[{u'quote': u'Undisclosed content', u'entity_id': 773, u'annotation_id': 4511, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u'The involvement of Federico Bortot- @Frankie_Bortot - an engineer interested in 3D printing and open assistive technologies could bring in useful skills. The discussion grew as the project about how research could benefit from such breakthrough experiences, especially in the field of assistive technologies and scalable manufacturing. Enrico from WeMake has brought support and enthusiasm in printing assistive prototypes like the one you see in the above picture.\nNow, we are collaborating online (Google Calendar and Google Docs mostly) and offline, meeting quite often at WeMake to design and deliver a local project with common goals....more to come', u'entity_id': 862, u'annotation_id': 4510, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u'Hi @Noemi!\nThe kick off event had a good start. During the\xa0first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind).\nThanks for the support!', u'entity_id': 14118, u'annotation_id': 4509, u'tag_id': 6, u'entity_type': u'comment'}, {u'quote': u'WeHandU will be an online site, but the focus is on customised items, thus it will be strongly connected to 3D printing technology.', u'entity_id': 835, u'annotation_id': 4508, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u"A new issue I could deal with, during these last weeks, has been the additive manufacturing (known by the most of us as 3D print).\nPart of the work at WeMake is done thanks to the 3d printers, machines that materialize objects from digital projects and templates. There are different types of 3D printers according to the type of material, process and size of manufacturing. The additive manufacturing is one of the most commons; the material i've seen so far is a kind of plastic wire warmed and turned into layers added on a base on which in few hours any object can take shape. There are prototypes and test objects all over the scaffolds and tables. After a while you get used to such unusual presence and start to think of materializing by print whatever. Really.\nIn the past week Costantino and I went to Fondazione Bassetti in Milan to listen to Professor Jos Malda from Utrecht University about 3D printing in the biomedica sector.\nMoreover, I could discuss with some of the makers about possibile uses of printing cells and what are the scenarios about it. We talked also about the possibility to print food.\nWhen it comes to 3D printing everybody is open to discussion here.\nA meeting with Rune and other collaborators turned in a interesting discussion about including patients in the process of manufacturing hands, or prothesis to grab forks and spoons to make people who miss some fingers, the hand or an arm, autonomous with eating. There are so many different applications and by 3D print it seems a viable way to save costs and have a just in time do it yourself scalable production of whatever the patient needs.\nOf course there are many issues about copyright, legal implications, safety, patenting and certification. What is sure is the interest not only at WeMake and other fab labs, but from the bigger community of innovators taking action inside opencare framework.", u'entity_id': 839, u'annotation_id': 4507, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u'I\'m very intrigued by this idea: "Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine.". It would leave out the parties who suck the most money of out\xa0of the local communities. But more interestingly, it would allow for personalized medicine. People with rare diseases or allergies, who are often neglected by corporations based on economical incentives. Empowering these people with the tools to provide for themselves or have a close one provide for them seems like a revolutionary way forward. Then again, safety and legal hurdles quickly come to mind. I hope there\'s at least room for experimenting with it.\n1000 people is already a lot... Congratulations!\xa0What do you feel is the biggest challenge in order to\xa0connect\xa0these existing, fragmented initiatives and replace competition in favor of cooperation?', u'entity_id': 7658, u'annotation_id': 4506, u'tag_id': 6, u'entity_type': u'comment'}, {u'quote': u'There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community\u2019s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.', u'entity_id': 741, u'annotation_id': 4505, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u'Last October, during the Makerfaire in Rome, the opencare WeMake team was exhibiting in front of project Hubotics! \xa0\xa0A DIY solution that provides customized physiotherapy at home. \xa0Composed of 3D printed parts, and a simple mobile app, the solution works in a way that makes it easy to stimulate muscles and nerves of the patient who needs therapy, with customized motion and power.', u'entity_id': 806, u'annotation_id': 4504, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u'Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.', u'entity_id': 523, u'annotation_id': 4503, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u'"A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.', u'entity_id': 10361, u'annotation_id': 4502, u'tag_id': 6, u'entity_type': u'comment'}, {u'quote': u'(e.g. 3D printing)', u'entity_id': 720, u'annotation_id': 4501, u'tag_id': 6, u'entity_type': u'post'}, {u'quote': u"Abortions\xa0are legal, but there is still a condemnation of women who decide to have an abortion, by doctors, partner, society, which is totally stupid woman's right is to do with her body what she consider is the best.\nVery little is done on education, large number of abortions, legal and illegal, women should be informed that this is not a form of contraception, and that repeated\xa0abortions are harmful to health, the number of adolescent pregnancies is rising.\xa0Awareness and\xa0availability of contraceptives, pills for the day after and abortion with medication, are crucial.", u'entity_id': 11895, u'annotation_id': 4517, u'tag_id': 8, u'entity_type': u'comment'}, {u'quote': u'This article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.\xa0\n\xa0\n"Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies.\nWhen asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.\xa0\n\u201cWhat I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,\u201d says Aiken. \u201cI think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.\u201d', u'entity_id': 26054, u'annotation_id': 4516, u'tag_id': 8, u'entity_type': u'comment'}, {u'quote': u"In fact, I think that the abortion underground functions so well purely because \xa0and thanks to the hypocrisy of the Polish society. Probably after decades of liberal regulations to some extent women are aware of the fact that abortions are needed, but catholic brainwashing has been so effective, that they're trapped between the moral and the pragmatic views on abortion. Now what seems to prove this is that women are not interested in lobbying for their right to abortion - they somehow agree to comply with the rules by having them underground and accepting the stigma, rather than fighting\xa0for their rights. Imagine even if the lowest estimate of 80.000 women having illegal abortions a year is right, and 10 percent of them would be up to fight with the system on that, we'd have a pretty great leverage to change the law by now. But we don't. have that. Well, at least until now - but this remains to be seen because we also have a conservative revival going on and if the church steps in, you never know who'd stay on top of things. I'd rather not expect us going any more liberal than we're at the moment.\xa0\nAnother thing is that part of the available options just use the loopholes, they're not illegal. I guess you can't stop a woman from going abroad or having pills. And a lot of turning the blind eye on the doctors who i believe are well known for doing the abortions despite working underground.\nAbout the movement now, I think there is a chance for some momentum - but I'm not too optimistic about it. We're observing a bit mobilization of civil society ever since the new government came into power, but that rarely brought any results. At the end, they use their democratic victory to pass any decision they seem fit - and giving up on a project of an outrageous reform just to keep rather shameful status quo is not a huge failure for them I believe. We might be building awareness and capacity for the future right now. Let's see.", u'entity_id': 16930, u'annotation_id': 4515, u'tag_id': 8, u'entity_type': u'comment'}, {u'quote': u'"Podziemne Pa\u0144stwo Kobiet" is both a documentary and a collection of abortion stories from Polish women who had illegal abortions in the past two decades. Poland most likely is the only country in the world that had abortions legal by law (1956-1993) and changed it "backward".\xa0We ended up having one of the most restrictive laws in the world, and the legislators were smart, by\xa0avoiding criminalizing women (with whom society would sympathize) and focusing instead on everyone else who assists with abortions (the penalties are up to 8 years in prison), creating a system of fear and paranoia.\xa0\nThe first thing that strikes\xa0about abortion in Poland is the statistics - according to Polish Ministry of Health in 2013, there were 744 legal abortions and 718 of them due to the risk of birth defects. 3 of them due to rape and 23 due to the risk posed to women health. In 2015 there were 1044 legal abortions. For a country with 38 million inhabitants, these numbers seem just wrong. In Spain or UK, these numbers are 200 or 400 times higher. And it\'s estimated that illegal abortions every year account for between 80.000- 200.000 cases in Poland.\xa0\nSo, what kind of abortions are available in the underground and how do women access it?\nChirurgical abortions are one of the common ways. They\xa0usually happen in\xa0hidden spaces, often barely up to any standards, with basic equipment, sometimes only in the presence of doctor (women who come to get the abortion might end up assisting them). The price of an abortion is at least\xa02000 zl (500 euros), and it tends to go up with the standard. In some cases, when doctors are well connected, they can even perform them in hospitals, which would double the price. Many doctors who refused to perform a legal abortion are perfectly fine with doing it illegally after settling the price with their patients.\xa0\nConsidering that the minimal wage in Poland is 1850 zl, and the average is 4000 (yet many people struggle to get contracts, work on 3/4 of full time, or often work on irregular gigs earning even less than 1000 z\u0142 a month with no minimal wage per hour), the price is quite prohibitive and exclusive. Many women end up taking\xa0loans to pay off their abortions.\xa0\nNowadays, women contact pro-choice organizations to find out\xa0who can help them with abortion. Since the 90ties, press and internet advertisements were the ways to find\xa0doctors who\'d perform them. Such services would be named as "painless restoration of menstruation"\xa0- and involve either chirurgical help or access to drugs, highly overpriced. In many cases a friend or a relative knows who does it in your town. The fear and paranoia remain anyhow - women are asked to leave the clinic right after the procedure is done, regardless of their condition, in order not to bring suspicion. They\'re asked to park their cars far away from the place of appointment.\xa0\nSome of the informal groups specialize in organizing abortions abroad. Ciocia Basia, a group of volunteer activist, helps to organize legal abortions in Berlin. For a price of 290/390 euros, they arrange pharmacological and chirurgical abortions in clinics, help with translations and offer a couch for the women coming over. Another popular destination is Slovakia and Czech Republic - it\'s super easy to find websites in Poland of clinics in these countries that provide with professional and anonymous help. Prices are similar to those in Polish underground.\nAnd then you have the pharmacological abortion. There are two drugs containing\xa0misoprostol registered and available in Poland, one of which can be bought without the prescription. Women usually end up making up stories about stomach pain or rheumatic grandmothers to buy them. Sometimes both of them can be obtained from "under the counter", forums also advise to ask a man to help\xa0buy them. Misoprostol should be accompanied by mifepristone to increase effectiveness (the combination of both has 98% effectiveness, while only misoprostol alone is between 80-90%), but the latter drug is not registered in Poland. In this case organizations such as Women on Waves help to buy and ship\xa0them from other countries (they ask for donation of minimum of 70 euros, but they do support women in economic difficulties by providing them for free). It is well known that some of the doctors write prescriptions for these drugs (a pack of 12 costs 25 zl, but can be sold 10 or more times more expensive on the black market) and help women get access to them via advertisements. It\'s impossible to track as these drugs are not refunded by the state - therefore not registered anywhere.\xa0\nDue to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek\xa0abortions or just had one, share their stories\xa0and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It\'s recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save\xa0lives in some\xa0instances of home abortions.\xa0\nI am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.', u'entity_id': 793, u'annotation_id': 4514, u'tag_id': 8, u'entity_type': u'post'}, {u'quote': u"What a story, @Timothy_Daly. Thank you for sharing it with us, and welcome to Edgeryders and OpenCare, our research project.\xa0\nThis really makes you wonder, reminded me of the Rosenhan\xa0experiment.\nThe detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.\nDo you have ideas on how to better the situation for someone like Dave? is a temp squat really doing anything good for him, or what would be a way to recovery that is dignifying? If you're involved in or know of systematic community efforts, do tell. \xa0\nIf you're more into the research and observation: we're struggling to put together a\xa0brief for stories about mental resilience, a set of questions that are\xa0solution-oriented and not intimidate people to share things that after all are very private in an online environment. Help if this is something of interest to you?", u'entity_id': 7227, u'annotation_id': 4519, u'tag_id': 9, u'entity_type': u'comment'}, {u'quote': u"a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.", u'entity_id': 502, u'annotation_id': 4518, u'tag_id': 9, u'entity_type': u'post'}, {u'quote': u'Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being. \xa0PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support.\nThis accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a\xa0triage system that helps participants understand the complete picture of a person\u2019s health first through a longform interview, followed by periodic \u2018check-ins\u2019 or urgent calls with the committed group. \xa0case \u2018health practitioners\u2019 are understood as those who share the responsibility of one another\u2019s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a \u2018health card\u2019 is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation,\xa0and solidarity.', u'entity_id': 826, u'annotation_id': 4520, u'tag_id': 10, u'entity_type': u'post'}, {u'quote': u'accessibility', u'entity_id': 34541, u'annotation_id': 12291, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'Clinics in Greece\xa0\nAlternative to 911 in the US', u'entity_id': 541, u'annotation_id': 11916, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'The tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.', u'entity_id': 33817, u'annotation_id': 4536, u'tag_id': 12, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 4535, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'our concept is really awesome and supercool.Using technology to reach out to the world with sustaibale E-health solutions in schools, hospitals and community events. With this great resource, i think quality information will be accessible for people and this will help save lives.. Good job, i am very impressed. Many of us will definitely love to collaborate with you to make the concept widely known especially in Africa. \xa0You could reach out to mbotiji@gmail.com. Thanks', u'entity_id': 27796, u'annotation_id': 4534, u'tag_id': 12, u'entity_type': u'comment'}, {u'quote': u'The viable solution seems to stay focused on the issue of accessibility in the milanese context for wheelchairs. It is something on which all the participants agree.', u'entity_id': 33749, u'annotation_id': 4533, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 4532, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'We are likely at the start of a similar revolution like the digital revolution. That means we have the chance to try and anticipate this time round; to try and prepare people; to embed values, like openness and inclusiveness, that make sure we don\u2019t need to fix the problems of accessibility and literacy afterwards.', u'entity_id': 530, u'annotation_id': 4531, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'I think the work you are doing is great. I am an anthropologist who studies young people\'s practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm).\n\nIt strikes me that the language of "shit happens" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all.\n\nIt would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!', u'entity_id': 24338, u'annotation_id': 4530, u'tag_id': 12, u'entity_type': u'comment'}, {u'quote': u"How can we build research into practice or at least make options much more accessible?\nThe question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community\nEven handbikes which are more popular can\u2019t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients.\nMy own group\u2019s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: \u201cThe FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living\u201d.\nWhy should you, me or anyone care about the future of research? you want to see your tax money spent well, don\u2019t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.", u'entity_id': 759, u'annotation_id': 4529, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'The approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point:\n"wheelchair" = "no"\nWhereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects ("nodes" or "ways") in OpenStreetMap rather than to coordinates.\xa0The results are stored as a layer\xa0in a CSV file on the city\'s open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer:\xa0http://umap.openstreetmap.fr/it/map/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15/40.3509/18.1826\xa0\nThis was done by the wonderful @piersoft and fellow citizens.', u'entity_id': 19845, u'annotation_id': 4528, u'tag_id': 12, u'entity_type': u'comment'}, {u'quote': u'In our intros we discovered most of us approach mental wellbeing in terms of how to make support more accessible - by inventoring and designing solutions, by opening up a conversation. I saw two big strands in the conversation that can inform our search:', u'entity_id': 5658, u'annotation_id': 4527, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'We do not reject modern methods of medicine, but recognize the need to detach its knowledge from the oppressive institutions that guard it. We are attempting to change our orientation to institutions of western medicine to one of use over dependence; a manipulation of the systems that surround us. While there are significant problems with the city\u2019s public health infrastructure, they do provide much of the emergency and chronic care here. We realize that there needs to be support for people needing to navigate these without the fear of accruing a huge amount debt, alongside the emphasis of practices that will ultimately lessen dependence on them. The spaces dedicated to holistic medicine or alternative care are largely inaccessible to large portions of the population because they exist for those who can afford them. For these reasons, our center is meant to involve community members, help us understand the care-related skills we already have, and be an informational resource for accessing all types of health modalities. We have public open times for the community, staffed by one of our members, to assist in that process.', u'entity_id': 5886, u'annotation_id': 4526, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'or these reasons, our center is meant to involve community members, help us understand the care-related skills we already have, and be an informational resource for accessing all types of health modalities. We have public open times for the community, staffed by one of our members, to assist in that process.', u'entity_id': 5886, u'annotation_id': 4525, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'professionalization of many specialities places it in a realm outside of normal access, ie through insurance companies, inhumane public institutions, high priced private centers.', u'entity_id': 29958, u'annotation_id': 4524, u'tag_id': 12, u'entity_type': u'comment'}, {u'quote': u'For these reasons, we started by building a health resource center within our Woodbine space.', u'entity_id': 521, u'annotation_id': 4523, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'. The goal was to understand more on how about enforcing the regulations about an access ramp before the shop that can be removed when is not needed', u'entity_id': 850, u'annotation_id': 4537, u'tag_id': 12, u'entity_type': u'post'}, {u'quote': u'People are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future.\xa0The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it\u2019s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it.', u'entity_id': 715, u'annotation_id': 4538, u'tag_id': 13, u'entity_type': u'post'}, {u'quote': u'Fairbnb should have three:\nHosts, travelers, and projects.\nBasically, I see the MVP as an Airbnb with an additional feature, an easy system to crowdfund projects on the platform (60% local 40% from wherever you want).\nThe fees will be more or less the same as Airbnb, 15%:\xa05% will be used to cover costs for the service, 10% will be allocated to projects directly\xa0by the travelers.\nThe trick is that the 10% that goes to projects will bring users.\xa0\nThe idea is to maximize the intrinsic and extrinsic motivation for users and let everybody be connected with the goal of the platform, in particular, projects will allow the organization to grow, scale and create a widespread mass of users.\nBonding our initiative to hundreds of others will create that crowd-powered process that is needed to achieve the critical mass without relying on VC money.\nTo offer a decent service and try to trigger the network effect at the beginning around 5000 accommodations are needed, distributed in all the major cities.\nThe process I see is this:\n1) Looking for 1000 projects (independent, possibly new, diverse to give everyone the chance to support the cause they care most). \xa0\nThis will be hosted on the platform for a certain amount of time\xa0and with a minimum and maximum goal (e.g. 5k-20k euros) when the platform will open.\n(I see the selection done thorugh\xa0an open call in different countries to have a worldwide coverage)\n2) During the call and for two months after the selection the platform will be open just for hosts to register.\n3) Projects will help to find at least five accommodations in their city.\n4)\xa0The platform will open to everyone.\n\n5) Boicott Airbnb campaign,\xa0start a serious\xa0public debate with action (put the initiative\xa0as an anti-capitalistic model\xa0that could compete with the existing one)\nBasically 5000 accomodations will solve the chicken and egg problem.\nWith an average per night of 28 euros\xa0\n5000 * 28 * 31 * 10/ 100000\nIt\'s an average of 434 euros a month for each project.\nThis growth strategy is like the basic to avoid failure at the beginning, because I think it\'s possible like for everyone to find five people that will put their accommodation on the platform.\xa0\nThis strategy should be integrated with all the "traditional" strategies.\nThe community that will form will be capable of doing much more.\xa0\nThe value proposition is easy to understand, if you travel with Fairbnb you do good by traveling (in a quantifiable way) instead of giving money to some billionaire.\nI think\xa0is really important to involve\xa0networks like Edgeryders, Ouishare, Global Changemakers, etc\nHosting 5 projects for every organization will help to crowd-power the activation of the platform and engage existing networks that have been thinking about world\'s challenges a lot.\n\n--\nThis is basically how I see the activation process.\nLots of people that use Airbnb use also other platforms (they are multi-homers) so probably both @Noemi', u'entity_id': 20627, u'annotation_id': 4541, u'tag_id': 14, u'entity_type': u'comment'}, {u'quote': u"I think a platform like fairbnb\xa0will be a great alternative to those who don't agree with some of Airbnb's practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?", u'entity_id': 14269, u'annotation_id': 4540, u'tag_id': 14, u'entity_type': u'comment'}, {u'quote': u'The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb).\nSince then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community.\nThe platform with shared ownership and control will be non-extractive, inclusive and cooperative.', u'entity_id': 829, u'annotation_id': 4539, u'tag_id': 14, u'entity_type': u'post'}, {u'quote': u'The organisation needs to ultimately be accountable to diabetes patients. It can\u2019t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don\u2019t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.', u'entity_id': 38856, u'annotation_id': 11869, u'tag_id': 1934, u'entity_type': u'post'}, {u'quote': u'Are you aware of communities working on accountability solutions? Cooperating with other organisations (Universities, Regional Governments, ... SCImPULSE Foundation  ) to set-up sandboxes to test alternative models of ensuring public safety, and sustainability of risks- and failures- management?', u'entity_id': 38810, u'annotation_id': 11841, u'tag_id': 1934, u'entity_type': u'comment'}, {u'quote': u'This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a\xa0triage system that helps participants understand the complete picture of a person\u2019s health first through a longform interview, followed by periodic \u2018check-ins\u2019 or urgent calls with the committed group. \xa0case \u2018health practitioners\u2019 are understood as those who share the responsibility of one another\u2019s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a \u2018health card\u2019 is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation,\xa0and solidarity.', u'entity_id': 826, u'annotation_id': 4546, u'tag_id': 15, u'entity_type': u'post'}, {u'quote': u"All our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us.", u'entity_id': 769, u'annotation_id': 4545, u'tag_id': 15, u'entity_type': u'post'}, {u'quote': u'Another advantage of doing things this way is increased accountability to the people who take part\xa0in the main conversation, the one about care. Through the research team forum, they can ask question and make proposals. This should mitigate the perceived risk of researchers taking an exploitative attitude towards people\'s contributions. The operative word here is "perceived". We have the best intentions, but we recognize this is not enough. We are determined to demonstrate them to the community, and transparency goes a long way towards doing it.', u'entity_id': 6175, u'annotation_id': 4544, u'tag_id': 15, u'entity_type': u'post'}, {u'quote': u'What I am interested in when talking about communication is how it leads\xa0to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown\xa0of Ghent is pretty bad.\nIt might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or\xa0moneywise) aspect. Your work as an artist is potentially a\xa0great help.\nHas your work on making complex issues around\xa0bodies of water acessible somehow contributed to citizen-led research?', u'entity_id': 21041, u'annotation_id': 4548, u'tag_id': 16, u'entity_type': u'comment'}, {u'quote': u"Yes, talking is easy, acting takes effort. It's the same with design, having a nice idea over a glass of wine in the evening? No big deal. But bringing it into life, really doing it and going against all obstacles is a totally different thing. It needs energy, dedication, belief, trust, confidence, help. You need to CARE about it enough to put it into action. So that's one aspect of care. That something/someone has enough value or meaning for somebody to be considered with putting real physical action into it. Usually this is the fact when we are affected personally. When it's a personal thing. When we are involved. When we are touched. When we are concerned.", u'entity_id': 650, u'annotation_id': 4547, u'tag_id': 16, u'entity_type': u'post'}, {u'quote': u"This is why we decided to be active citizens, to get involved in various initiatives we are working on, pulling in our network and knowledge base - and turn things around by, inspiring, collaborating and sharing information, including enlisting more volunteers from the football club to the BIDs projects, showing that non-hierarchical organisations welcome everyone. It's important to talk, share, bring people together, because it's part of the process of change - and this is where OpenCare comes as a partner.", u'entity_id': 716, u'annotation_id': 4549, u'tag_id': 17, u'entity_type': u'post'}, {u'quote': u'First of all, a kind of participatory assessment, based on a broad and heterogeneous participation was appreciated also by @alessandro_contini -the designer in charge of the user research meant for shop owners only that will follow this event. What emerged are unexpected cases in-between and common and shared interests among stakeholders. The social dimension emerged as a shared need to construct a substantial and workable objectivity, by a keen and multidimensional analysis of the formal objectivity embedded in the procedure and the script articulated in the fields of the form. What citizens could make visible where aspects of the dimensions for access that usually remain invisible when filling a form or being counseled by a technical advisor.', u'entity_id': 850, u'annotation_id': 11917, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 4568, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'What have we learned about having citizens define and help advance our research project?\nOur team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn\xa0and contribute. The sharing of knowledge and responsibilities\xa0within our group thus mirrored what we were seeking to support beyond the group.', u'entity_id': 859, u'annotation_id': 4567, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'I\'ve cut and paste the text below\xa0from the web - just wondered if anyone had existing links as it sounds as though there\'s potential connections for OpenCare in general?\n"Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things).\nNuka was developed in the late 1990s\xa0after legislation allowed Alaska Native people to take greater control over their health services, transforming the community\u2019s role from \u2018recipients of services\u2019 to \u2018owners\u2019 of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of \u2018working together to achieve wellness through health and related services\u2019. Southcentral Foundation provides the majority of the population\u2019s health services on a prepaid basis."', u'entity_id': 6441, u'annotation_id': 4566, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u"Hi @Gehan, it's a pleasure to meet you. You're welcome, these conversations are crucial and must be shared.\nFor starters, reframing the problem in human-centric ways,\xa0technological solutions and its designers could develop\xa0a deeper understanding of the user's lives and their unmet needs. This will\xa0bridge the gap between product (solution) and the user population who would most benefit.\xa0Developing supporting systems that recognize the unique challenges of each patient, that means taking it to the community, and having them create the impact and play a major role.\nFYI part 2 of this conversation forthcoming", u'entity_id': 15427, u'annotation_id': 4565, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u'With modern day communication technology sharing through email, social media and Skype it rarely encourages people to share the evolution of their project. We often list, number, bullet point, but seldom do we engage in informal discussions where we share knowledge and reflect. It\u2019s in the reflection that we witness human capital being the driving force behind our projects. It\u2019s worth taking a look at SoundSight, whose story has sparked curiosity in co-creating care solutions. \xa0There are many factors that determine the direction of our projects. For\xa0SoundSight\xa0it has been an ongoing commitment of the human capital to bring forward this project.Experiencing co-creation is a method to bring value to patients in a personalized way with the intention to benefit patients in coping with their health and enhance their quality of life. Looks as though co-creating is the road where the community is defining the destination, planning the journey and sharing the drive. \xa0Let\u2019s hear from Irene\u201d\n\u201cI can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special\u2026 how wrong could I have been!\nLong story short, I had reached out as part of a design thinking exercise, after brainstorming with my colleagues over social and technical literature to find solutions to the challenge of blind people navigation through living environments, \u201csimply\u201d to extract narratives about what we thought their problem to be and, thus, tune our solutions\u2026 We had succeeded obtaining the information we wanted, we had lists of the defeating features of currently existing solutions, descriptions of use cases, but while working on the desired features, something started to emerge for some of us in the team: another narrative had been seeping through our conversations with the blind volunteers, that we did not consider in advance. Most of the blind people we had talked to, despite agreeing to the obstacles imposed by visual impairment, did not consider that a defining condition and were rather cold to any assistive technology they tested or we described. Instead, narratives of empowerment, education, disintermediation, were flowing through most of their replies, even when our conversations were explicitly biased towards solutions\u201d.\nLet this sink for a moment. And remember that the number one challenge of helping another person is falling in love with the solution one wants to offer, losing sight of the\xa0person\xa0in exchange for the\xa0problem.\nSo we asked Irene to recollect her most significant conversation for us:\nIL (Irene Lanza): \u201cGood morning Maria[\xa0I would like to thank you already for your time\u2026 it is truly precious to me to be able to talk with you\u201d\nMBC (Mother of an 11years old blind child): \u201cGood morning Irene. I have heard about you from my friends and fellows from the blind union\u2026 they say you are a very polite and smart girl\u201d\nIL: \u201cAww\u2026 how much will they ask me to pay, now? \u2026haha\u201d\nMBC: \u201chaha\u201d\nIL: \u201cDid they also already tell you about what I would like to talk today?\u201d\nMBC: \u201cvaguely\u2026 apparently, you are working on a new technology to assist blind people in their daily life\u2026?\u201d\nIL: \u201cThat is fairly accurate, but luckily they did not spoil our fun by letting you in too many details. In facts, we are working at the proof-of-concept of a wearable device that could analyze the surroundings in real time and feed information about objects, their velocities, and positions to a visually impaired user, to allow him/her moving naturally through a living environment\u2026 our challenge is to allow a blind person to play a football game competitively against people with normal vision\u2026 well, we would still not provide talent though\u201d\nMBC: \u201cSo, are you thinking of something like those apps on the smartphones?\u201d\nIL: \u201cWell, not really\u2026 we would have dedicated hardware, and we would like to collect your opinions about how to design the user interface\u2026 a smartphone app would be a proof-of-concept compared to the kind of product design we are pursuing\u201d\nMBC: \u201cI don\u2019t like this kind of assistive technology much\u2026 you never know it will let you down. So many factors: the signal may be lost, the battery may go down, the app could crash\u2026 what should I do then?\u201d\nIL: \u201cThis is exactly what I am here to listen to\u2026 you see, we will collect all these opinions, and try to prioritize features in our design concept\u2026 so, have you already tried some of those?\u201d\nMBC: \u201cI am constantly exploring and searching for new tricks and tools that could help Mario, so I often talk about this topic with my friends at the union, and I try some them after reading their reviews or hearing their presentations. Most of them are quite far away from real life, for they are very specialized on single use cases, and they rely on infrastructural investments that in our Country are stagnating for too long already. Mario\u2019s problems extend well beyond walking through an airport or a shopping mall or reading the label on a tomato can. The only tool I really find useful is the reader with vocal synthesis on the smartphone: it works pretty well and it\u2019s so precious to be able to listen to any book when audiobooks are still not the norm\u2026\u201d\nIL: \u201cSo could you tell me more about Mario\u2019s experience? What do you think are the most commonplace barriers he experiences when going to school? How does he roam around?\u201d\nMBC: \u201cHe is training with the stick. Many people dislike it, but it is rather dependable and attracts sufficient attention to ensure that other people will be more cooperative and safely behaved. However everyday life can become very problematic. Architectures are often hiding traps that would surprise for the naivety of those who designed the spaces: you would never imagine the feeling of dread when you have just seen your son missing an unprotected element from a window, protruding out of a wall with its sharp corners\u2026 and the use of the spaces themselves can be even more challenging! Hanging wires, doors opening directly on stairs, elements built in non-shock-resistant glass. Many of these, if you ask me, would be dangerous to any child, but if you factor in the inability to forecast what you are going to meet next\u2026 The risk of bad practices escalates quickly!\u201d\nIL: \u201cSo school is not a safe haven for Mario\u2026?\u201d\nMBC: \u201cNot just that\u2026 most activities are not structured to include children like Mario. Schoolbooks are more difficult to find as eBooks for the vocal synthesizer than others. Even then, many graphics, whether didactic or there for testing purposes, remain inaccessible\u2026 and even the teachers, despite being adorable with Mario, are not informed about methods for inclusive teaching\u2026 For example, my husband is a musician, and he has always tried to exploit musical theory to organize our family games (she mocks for me a couple of games based on recognizing the tones, or what an object at home could be based on analogies of noises). We constantly try to use acoustics as a tool to explain concepts, and risks to our child\u2026\u201d\nIL: \u201c\u2026and this, of course, doesn\u2019t happen at school\u201d\nMBC: \u201cNot even closely. School sometimes becomes a very frustrating experience\u2026 a place of isolation to remind Mario of his diversity. Irene, you are young, you must remember your lectures of geometry, for example\u2026\u201d\nIL: \u201cyes, indeed\u2026 mostly graphics are drawn on the blackboard\u2026 I see what you mean\u201d\nMBC: \u201ceven our language is geared for the idea that\xa0seeing is believing. Mario often tells me that he has seen a schoolmate with a certain outfit or some event that he is going to tell me about\u2026 he does enormously to find his place in society. And my husband and I do our maximum to help him surpass the social barriers: we teach him games that he can play with his friends, we accompany him to familiarize with the places where he will have to interact with his mates, and we drill into him, constantly, how to react to the unexpected, hoping that panic will never prevail. Technology, instead of these half-baked attempts at substituting vision for simple tasks, should take on education\u2026 there is so much more that is lost in our societies when one cannot see than just reading on a can whether it is tomato or green peas, and nurturing those skills that we all have as fellow humans, rather than focusing on what we lack, would be so much more empowering.\u201d\nIL: \u201cwhat you say is very inspirational\u2026 so you believe education is the true mean of supporting Mario\u2026 and what is the place of technology in your vision?\u201d\nMBC: \u201cwe live in a time obsessed with technology, and we forget that it is just a tool. I have not hidden from you, I am not a big supporter of the idea. For example, we use the e-reader with voice synthesizer\u2026 the problem is extremely important, but not mission critical, and so the technical solution makes sense\u2026 I am not sure I would delegate to technology, or to other humans for what is worth it, many other things on a regular base\u2026 what would be the meaning of life, if you give up on the very experiences that make it worth sharing and living? We are social animals, someone more important than me said once\u2026\u201d\nIL: \u201cMaria, thank you really for letting me peer into your family life\u2026 and thank you for your kind guidance. I hope that we will be able to live to your expectations, but I can already promise you that we will at least try our best!\u201d\nMBC: \u201cIt has been my pleasure Irene, it is so nice to meet a young person trying with enthusiasm to tackle a problem we have to deal and cope with every day. I wish you the best of luck, and I look forward to hearing about your progress!\u201d\nWhen Irene went back to the team after this conversation, she was confused, for having just experienced the most confrontational conversation about their project. Irene was moved emotionally by the passion and interest expressed by the mother. An experience that would leave her forever changed and stretched.\nWith Irene insisting, a small group of three people from the original team started diverging from the original path of designing a wearable \u201csmall world\u201d navigation system. They started brainstorming wildly about educational concepts.\nIndependently from the rest of the team, which opposed the need to bring to completion the academic assignment, they sought a new agreement with their mentor and started optimal\xa0thinking at 360\xba. Using 3D ultrasound-based haptic interfaces to offer interactive geometry education or simulators for practical tasks that would completely substitute visualization for acoustic and tactile feedbacks? Most of the early ideas were dropped when their mentor, or people not involved in the team that he suggested to talk to, would object other low-tech solutions (e.g.: wooden models for 3D geometry) could deliver almost the same experience, significantly undercutting the complexities of the projects.\nIt was during this na\xefve and intense search, that their mentor showed them a video of a blind person using tongue clicks to echolocate while biking (!!!). The rest, as they say, is history, and we will share with you a few details about the early testing in a next post\u2026 so follow us The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon.\xa0\n*To protect the privacy of individuals the names and identifying details have been changed. \xa0There was a brand indicated, which we discovered is trusted among the blind community, but we do not think it is relevant here.', u'entity_id': 577, u'annotation_id': 4564, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'Hi @Noemi!\nThe kick off event had a good start. During the\xa0first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind).\nThanks for the', u'entity_id': 14118, u'annotation_id': 4563, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u"Hey @johncoate and @Gentlewest, I just saw these last messages of yours and I am\xa0sorry I haven't replied earlier. @johncoate Solidarity can arise in many ways and forms, and both formal associations and informal collectives have offered amazing solidarity solutions in many ways. For me what matters is not formality or non-formality,\xa0but \xa0the level of participation and the style of governance.\xa0In our case, the R2R call center is an informal collective, supported by the open global cooperative ecosystem of FairCoop on the global level, which is also a self-organised project with a global community involved. @Gentlewest thank you for the nice words, I couldn't agree more.", u'entity_id': 29081, u'annotation_id': 4562, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 669, u'annotation_id': 4561, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'The Work with local CCWs is still a focus for the Sustainable Livelihoods Foundation, who I was employed by. I managed various projects using various participatory approaches to explore lived experience and provide an outlet for expression. One of our projects funded by the Making All Voices iniative sought to bring these issues faced by CCWs to the City governance structure. It was a phenomenal experience trying to track down CABS and Clinic Boards (whom only exist on paper). There is a network we found that are actively working for the benefit of CCWs, but gov has cut funding for this network and introduced a new structure that is completely defunct and has no community representation (based on my findings in 2016).', u'entity_id': 33824, u'annotation_id': 4560, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u'Allow me to rewind, ever so slightly to paint a picture. I\'ve previously sought to test photovoice as a participatory method by forging relationships with community members from an under-resourced community in Cape Town, South Africa, and Scientists from the University of the Western Cape. The project sought to bring these varied parties together in a participatory workshop process, after which community members were trained on DSLR cameras and instructed to capture the lived experience of food in their everyday lives. They could capture anything related but not limited to\xa0the purchase, consumption or disposal of food. This project revolved around Cardiovascular disease and the Scientists involved were Seniors at the Cardiovascular Research Unit at the University of Stellenbosch. The array of visual material and accompanying narrative was phenomenal and utterly beautiful. It shed light on the constant negotiation of food and consumption in these communities, including the availability of food, what kind of food was deemed healthy or not, when it was suitable for food to be disposed, food as celebration and community building etc. To me, and the Scientists involved, this process unveiled knowledge on food consumption behaviour and more structural issues imposed on these communities. It was never simply a "I want KFC and I shall buy KFC". This food choice is always compounded by budget, compromise, available options, time of the month, etc. People are consciously and constantly negotiating and re-negotiating choices. My heart broke when a Senior member of the project sample pulled me aside mid-project and told me ...', u'entity_id': 33730, u'annotation_id': 4559, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'In this framework, we organize a unique Creative Centre for our children which we called BIG BANG after SCHOOL\u2019. This is a comprehensive program for elementary school children and kindergarten, where all participants are able to connect with music, cinema, dance, theater, arts as well as workshops in creative thinking, constructions, architecture and engineering. Additionally, we created a specific program for elementary courses such as science, history, philosophy and multilingualism. In this project, everyone is welcome to contribute in different ways besides financial support. This is a project designed to benefit children and parents who seek for alternative educational methods of learning and interacting with people and the natural environment.', u'entity_id': 761, u'annotation_id': 4558, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'Thanx @Noemi, we have already got through @Living_street since it was instigated by a Municipality, but we had missed @CarrotMob. We find it quite inspirational since it is purely based on positive instences. In fact in our pilot phase starting 14th april we\'ve included (you\'ve got me... I am directly involved) many different stakeholders including active citizens. Even if we haven\'t thought of them as consumers, therefore, empowered with "incentives".', u'entity_id': 14016, u'annotation_id': 4557, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u'Like you, I am interested in participation. My own work has been about ways that the Internet can enable more effective forms of participatory democracy. I even wrote a book about this. My point of departure was that participation as we inherited it from the 20th has not made a substantial impact on decision quality or societal cohesion, at least not in Italy, not even in the best cases. There are many reasons why this happens. Some of them:\n\nParticipatory processes are designed by civil servants, with other civil servants and "usual suspect" stakeholders (like professional business and trade union representatives)\xa0in mind. In your rural development example, I see that they worked through offline meetings, convened in cities and on weekdays at 11.00 am. That choice is going to prevent the most interesting potential participants (the local entrepreneur, the teacher, the parent of small children...) from showing up. People who reliably do show up are the people paid to participate, like representatives and lobbyists... but those already have channels to talk to the government. The other option would be to convene during the evenings, but, at least in Italy, civil servants do not like this at all. The option is almost never even discussed. So, most of the collective brainpower is ruled out before the process even starts.\nThe "technology of participation" (the town hall meeting) is non-scalable. This means (a) every participant\xa0will spend most of her\xa0time being talked to and (b) people will need to keep any intervention short. This means there is no time to explore issues and scenarios. This is why I like so much online forums like Edgeryders: you can participate in your own time (when you are off work, when your children are asleep...); take time to make your case; and no one is forced to be reading anyone else. We\xa0choose\xa0to engage with contributions we find interesting.\nThe social contract underpinning participation is often not clear. I participate, then what? What we suggest gets implemented? What we suggest gets considered? How do I know decisions have not been made beforehands, and the decision maker ris just looking for a rubberstamp? Recent example: after an online and offline consultation with 1.8\xa0million\xa0participants on Italian schools, number 1 request that emerged was to have teachers evaluated by independent experts, and not by their own headmasters. The government, nevertheless, decided to reject that request. Assuming the average participants spent two hours participating (very conservative assumption), that means the waste of 3.6 million hours. In European standards (1,732 productive hours in a year), that the equivalent of about\xa02,000 years of human work. Not cool. The social contract issue is the easiest one to fix.\n\nI have recently been involved in contributing to Italy\'s 3rd action plan under the Open Government Partnership (as an activist, unpaid). My brothers-and-sisters-in-arms and myself made these points quite forcefully, and they have been adopted by the government. Here\'s to hoping for better times.', u'entity_id': 30886, u'annotation_id': 4556, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u"It should not be so difficult to set up something like a voucher system for disabled people. You've got a condition? Here's your voucher, head off to your local makerspace, someone will talk to you. There's a condition, though: you'll need to be an active participant, not a passive consumer. You'll need to help with design, testing, providing feedback. In other words,\xa0you will need to join a community of makers. Your exact role will depend on your skillset and enthusiasm: the harder you work, the better the outcome solution will fit your particular condition.", u'entity_id': 16243, u'annotation_id': 4555, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u"we consume.\nNothing is set. The future is what we make it. So it is up to us 'the people' to decide whether we want to continue living a life of subordinates, never resuimng our own responsibilities (which is actually much easier as there is always someone else to blame for our problems) or to finally ascend and take (our) matters into our own hands. Food policy councils are only as good, representative and successful as the people that comprise them..", u'entity_id': 12835, u'annotation_id': 4554, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 4553, u'tag_id': 1949, u'entity_type': u'post'}, {u'quote': u'But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients\xa0being\xa0researchers, and viceversa.', u'entity_id': 26032, u'annotation_id': 4552, u'tag_id': 1949, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 526, u'annotation_id': 4572, u'tag_id': 20, u'entity_type': u'post'}, {u'quote': u'Community Acupuncture is a new version of an old format of providing a very old form of medicine \u2013 using traditional East Asian methods, it eschews the one-to-one treatments most common in the West, instead adapting the traditional Chinese model of treating multiple patients at once in the same room. This enables treatment to be offered more cheaply, as well as creating a shared space of communal healing, so that healthcare becomes a site of community empowerment. There are now over 170 such clinics in the US and more than 50 in the UK (you can read about their history and ethos on the websites of POCA and ACMAC).\n\nAs I detailed in my original Opencare blog post, I have been slowly evolving a CMAC of my own to serve a small and somewhat dysfunctional market town in the South-West of the UK. Through this process, a number of tough lessons and intriguing insights have emerged, with broader implications for the innovative provision of care in contemporary European societies.\n\nI subtitled my initial post \u201cAn Ongoing Mutation\u201d both in reference to the overall development of the approach in the West and to my own experience of developing a clinic. This experience has been one of trial and error, of creative response to practical and bureaucratic challenges, and of constant adaptation to feedback from \u2013 and through ongoing relationship with \u2013 the community; as I learn more about their needs and perspective, I have changed the way I am treating, the way I interact with patients, the hours treatment is offered and the venue it is offered in.\n\nTo ask, as a state bureaucrat convinced of the usefulness of CMACs might, \u201chow can we replicate this so that we can roll it out across the country at an official level?\u201d rather misses the point; it is precisely by being embedded in the community that this process of creative mutation can occur, and precisely by meeting patients outside the usual structures of state-sanctioned medical authority that a more horizontal trust and respect can be created, and a more creative approach to healthcare provision enacted.\n\nLike many of the other projects featured in OpenCare, the flexibility of Community Acupuncture \u2013 light on infrastructure, expensive medical equipment or architectural requirements, reliant instead on the portable diagnostic and treatment skills of the practitioner \u2013 makes it well-suited to navigating a disrupted present and an uncertain future. Quite aside from its effectiveness at treating unexplained and chronic conditions (the kind mainstream Western medicine does not excel at curing), having the ability to treat without reliance on fragile, resource-intensive and environmentally-damaging industrial supply chains may well prove to be a great asset in the near future. Indeed, the worth of this is already being proven through the work of charitable foundations like World Medicine, who have set up successful CMACs in poor, rural areas of India, Palestine, Nepal and Sri Lanka.\n\nProblems still remain, not least with the institutional resistance to acupuncture \u2013 often based on little more than ill-informed prejudice against \u2018alternative\u2019 medicine. There are clashes within the acupuncture community, as well, on how best to treat, and issues with providing quality-assurance and redress to patients whilst working outside the usual channels and institutions of healthcare.\n\nNevertheless, the popularity and effectiveness of CMACs speak for themselves. All too often, the state-established institutions of care remain locked into a post-imperial perspective, treating the body, the patient or the polis as the passive subject of a homogenised, top-down intervention.\n\nIt is a little like a digital advertising screen, broadcasting a single, one-way message to a public who have no choice but to receive it. Just like a digital advertising screen, this kind of healthcare can seem cutting-edge, innovative and technologically impressive, but its values do not respect the uniqueness of individual or place, nor do they promote communal solidarity and empowerment. So long as this is the case, communities will continue to vote with their feet, seeking out new forms of adaptive Open Care that address their real mental, physical and social needs.\n\n\n\nI would love to see Community Acupuncture being integrated with some of the other projects and approaches detailed in OpenCare; to hear suggestions about how the CMAC model could be further improved and evolved; and, as ever, I am keen for people to educate themselves about acupuncture, to help fight against the misguided myths that have arisen about it, and to spread the word about this affordable, effective, environmentally-friendly and humane form of medicine!\n\nSteve Wheeler, Lic. Ac., MBAcC - steve@whiteoakhealth.co.uk\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.', u'entity_id': 549, u'annotation_id': 11919, u'tag_id': 21, u'entity_type': u'post'}, {u'quote': u"An acupuncture practitioner; holistic fitness and practices of working with the body, relaxation and breath work, Tai Chi, Hichibuku.. and others. Started his own clinic initially around Dartmoor in SouthWest of England, but will have a new one up and running in the summer as he\u2019s moving to Bridport. Also shows how it can be useful for people with mental health\nAt #OpenVillage wants to do more\xa0than a presentation, a demo: actually treat someone and demonstrate how healthcare can work in its more traditional model - more attention to human care. Alex: \u201cI'd love to see you run the space for people in the morning and then perhaps in th afternoon do a presentation about the process. That way you will have people in the room who have also experienced it\u201d.\nAlso, walk the talk - make sure onsite there\u2019s a little space built in for people to take care of themselves. Alex: I'd like to see if we could set up something like this: https://harrygiles.org/portfolio/chill-out-corner/", u'entity_id': 6360, u'annotation_id': 4580, u'tag_id': 21, u'entity_type': u'post'}, {u'quote': u"WinniePoncelet, and glad to hear you found the cause of the problem in the end.\nYour distinction between authority and power is very useful. The point about different cultures reifying the system vs the person is also very relevant here - the problems around regulation and recognition of traditional acupuncture in the west can basically all be traced back to the original error of accepting the setting of the terms of debate around the technique 'acupuncture' rather than the practitioner.\nIndeed, I call myself an 'acupuncturist' because people are familiar with the term - but a doctor or physio who has done a few weekends training in the technique can also legitimately call themselves an acupuncturist. \nIn reality, I am a 'traditional medicine practitioner' who uses a variety of techniques, including acupuncture. The main point of coming to me is for my knowledge of chinese medicine theory, my diagnostic skill and my years of training in using the needle [or cup, or hand] to effect change in the body.\nAnd there is an additional hurdle to overcome; I am using an unfamiliar medical paradigm and technique that people do not necessarily have trust in [at first] - and I am doing so outside of the usual recognised channels of 'medical authority'. \nSo I have to simultaneously convince a patient of the soundness of the medical approach as a whole and of my own competence - when they may be used to thinking in terms of trust in the system and not the individual.\nThis is why I was keen to have patients provide some of the impetus for engagement themselves - if they waver in their trust of me or the medicine there is no institutional push for them to remain in treatment as there is in mainstream medicine.\nBut evidently part of keeping them engaged is providing that sense of medical authority that they want.\nSo now I'm thinking about how I can generate the kind of reassuring authority I need without falling into the established patterns of power relationships we are used to in the west.", u'entity_id': 18817, u'annotation_id': 4579, u'tag_id': 21, u'entity_type': u'comment'}, {u'quote': u"Yes, I think there could be some very interesting cross-over with the WeHandU-type approach. Notwithstanding what I said in reply to @Alberto below about the need to retain a degree of 'expert-pateint' hierarchy, I am very interested in exploring the prospects for more collaborative healing.\nIndeed, the nature of Traditional East Asian Medicine is very collaborative already - patients can be given exercises to do, dietary changes, self-moxa kits, or herbal teas that all supplement and reinforce the acupuncture treatment, meaning that they are far more involved in their own journey back to wellness.", u'entity_id': 11802, u'annotation_id': 4578, u'tag_id': 21, u'entity_type': u'comment'}, {u'quote': u'Glad to hear the acupuncture was helpful! I was talking to an Irish acupuncturist just the other day and it sounds like they face many of the same hurdles around perception and bureaucracy there that we do in the UK.', u'entity_id': 15313, u'annotation_id': 4577, u'tag_id': 21, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 4576, u'tag_id': 21, u'entity_type': u'post'}, {u'quote': u'acupuncture', u'entity_id': 24022, u'annotation_id': 4575, u'tag_id': 21, u'entity_type': u'comment'}, {u'quote': u'Of course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.', u'entity_id': 13679, u'annotation_id': 4574, u'tag_id': 21, u'entity_type': u'comment'}, {u'quote': u'Community/multibed acupuncture, if you are not familiar with it, is a new model of acupuncture provision based on the multibed model common in China and Japan. Costs are lower because multiple patients can be treated at the same time, in the same space (in the US, reclining garden chairs are commonly used to keep equipment costs even lower, as in the picture above). This is possible because this style of acupuncture mostly uses distal points on the arms and legs (no undressing required) and, after insertion and manipulation, the needles are left in to continue working for 20 minutes while the next patient is seen.', u'entity_id': 671, u'annotation_id': 4573, u'tag_id': 21, u'entity_type': u'post'}, {u'quote': u"For a while we were disheartened to see people we\u2019d worked with on issues of addiction appear back at our doors. What were we doing wrong? We were adamant that we did not want to be another revolving door for people stuck in the cogs of a poverty industry or disease factory. Slowly we realised - by classical 'analysing our own reality' - that the systems and relationships beyond our doors and beyond our direct influence were considerably more effective at creating disease and dysfunction than we could ever be at resolving it - especially on grant funded (frequently cut) project work, creating environments where people could find greater health and humanity. And now we know the imperative of both - to be there when people need us on the renewed understanding that many diseases and social ills are adaptations to the dysfunction in our wider systems. On its own, this would amount to little more than sticking a finger in a crack in the harbour wall in the face of a tsunami. So now we understand that working to influence system change is also essential to not only the health in individuals but increasingly the survival of our communities. I find what Deborah Frieze refers to as\xa0'hospicing the\xa0dying' in relation to systems\xa0helpful - an important aspect of care work in our times. What is called for as old systems collapse? How do we work to illuminate and support the emergence of the new?", u'entity_id': 13972, u'annotation_id': 4586, u'tag_id': 23, u'entity_type': u'comment'}, {u'quote': u'In relation to what i bring on to the open village festival, i intend to lay out the underlying reasons why we have a lot of youths engaged in drug abuse in africa and its social-economical effects of developing-world countries.\ni would to demonistrate the importance strong communities towards combating the drug menace and eventually creating awereness with views eradication of the drug menace.\nradicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA.\nwe hope to grow a strong network out of the presentation at the festival so as to broaden our scope of understanding and welcome some experts in social-counseling who may helps in rehabilitating these youth into leading productive lives within the communiting.\napproach of presentation\n\nthe presentation may include brief videos and statistical data to show the scale of damage.\ngroup discussions and presentation(which may require representatives of each team presenting their finding to attendees)\nslides hence i may require :\n\n\nprojector\nwhite board\nmakers\n\nNOTE : the presentation may take 30-45 minutes\nat the festival i hope to learn more on collaboration and experiences in europe which may help us advance our urge to transform our local communities to provition of global solution to our local challenges.', u'entity_id': 6407, u'annotation_id': 4585, u'tag_id': 23, u'entity_type': u'post'}, {u'quote': u"I was having another chat with a friend and colleague who is heavily involved in attempts to influence drug policy... in relation to the AOL theme, this is a case in point - as you may know - globally drug policy is dominated by a harm reduction approach that is founded on 2-3 experiments that drew conclusions about the addictive nature of heroin based on rats in cages - Bruce Alexander's work talks about a different approach - the globalisation of addiction based on a counter experiment nicknamed 'Rat Park' & there's a great graphic novel report of this - perhaps graphic novel format might be an alternative way to gather and diseminate insights?", u'entity_id': 23963, u'annotation_id': 4584, u'tag_id': 23, u'entity_type': u'comment'}, {u'quote': u"repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment.", u'entity_id': 502, u'annotation_id': 4583, u'tag_id': 23, u'entity_type': u'post'}, {u'quote': u'initiatives: part \u2018P2P: sharing best practices\u2019 and part \u2018advocacy for access to public research funding\u2019. So far most of the work we\u2019ve done has been about growing the network and finding our identity.', u'entity_id': 6427, u'annotation_id': 4588, u'tag_id': 24, u'entity_type': u'post'}, {u'quote': u'Soon after my initial diagnosis my psychiatrist encouraged me to get involved in mental health advocacy work. It would be 15 years later before I did this and found the benefits of it. Last year I completed 12 weeks of training with 4 hours per week work with the Irish Advocacy Network. I am now in the early stages of serving on one of these Consumer Panels as secretary, representing the views of service users in the Galway mental health area.', u'entity_id': 562, u'annotation_id': 4587, u'tag_id': 24, u'entity_type': u'post'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11776, u'tag_id': 25, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 10975, u'annotation_id': 4590, u'tag_id': 25, u'entity_type': u'comment'}, {u'quote': u'We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority.\nIn care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human "resources" and patients as "consumers" of health care services, squeezing the system to extract wealth.\nThis is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having "owners" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to "delivery of health services", which is quite a different thing.\nA useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn\'t otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure.\nTo put it another way, using financial language, owning land has a different time horizon and a different risk profile\xa0 from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That\'s the theory anyhow.', u'entity_id': 15711, u'annotation_id': 4589, u'tag_id': 25, u'entity_type': u'comment'}, {u'quote': u'So this is a cheap herbal remedy. It grows really well in these tropical regions, and quite fast too. So it does not take up a lot of cost in production, except for its processing which could cost quite a bit. But this advantage allows us to produce en masse and a cost efficient rate, so we are able to give it out to the public at incredibly cheap prices - cheap enough to have daily supplies\xa0affordable\xa0by just anyone. Since these are teas in tea bags, it makes it even better.', u'entity_id': 22191, u'annotation_id': 4597, u'tag_id': 26, u'entity_type': u'comment'}, {u'quote': u"I don't have any evidence of the effectiveness of my own treatments specifically, though! I can't afford to hire a medical research team, so I'm reliant on the already-existing body of evidence and theory.", u'entity_id': 19471, u'annotation_id': 4593, u'tag_id': 26, u'entity_type': u'comment'}, {u'quote': u'Affordability \u2013 always a good thing.', u'entity_id': 8207, u'annotation_id': 4592, u'tag_id': 26, u'entity_type': u'comment'}, {u'quote': u"4) Affordability - although health care is free ('at the point of use') in the UK, it is, in effect, rationed; waiting lists are getting longer again, and many NHS trusts are effectively bankrupt. C&MACs offer a form of healthcare without the expensive pharmaceuticals, electronics and salaried consultants. Most either offer a reduced rate (e.g. \xa320) or a sliding scale (e.g. \xa310-30, where you pay what you want). [I've found problems with both models - resistance to the idea of a sliding scale is very common, and often leads users to undervalue what is being offered. Given that it has taken the District Council 2 months (at this time of counting) to respond to what should be a simple request for licensing, and given that the licence terms for this district are insanely onerous, I have found a degree of freedom and enjoyment in simply offering treatments for free and explaining to patients what sort of average donation is necessary to keep the clinic open.] If all kinds of healthcare were funded equally, acupuncture would prove massively more cost-effective than many 'mainstream' modalities - not to mention less energy-intensive and ecologically-damaging.", u'entity_id': 671, u'annotation_id': 4591, u'tag_id': 26, u'entity_type': u'post'}, {u'quote': u'The United Nations think that health care is the nub to development, and the forerunner to any of the other Sustainable Development Goals; that is for a country, or a continent...or Africa to develop strongly, there must be sound healthcare system first. I think that there are many suffering in Africa because of the unaffordable, inaccessible, and inadequate health care system, and I think that in order to keep the tolls of death low, perhaps people don\u2019t need to wait for a revolution to the health sector, maybe what we need is an easily accessible, and affordable health alternative. Because of the many polluted rivers, African children die daily from diarrhea. The Center for Disease Control and Prevention tells us that 2,195 children die EACH DAY from diarrhea. Due to the unaffordable health care system, many diabetic sufferers die without receiving proper medication or medical attention. Hence, many African countries like my country, Nigeria, have one of the highest diabetic sufferers and deaths.\nMy name is Ivan Ezeigbo. I am 20 years old, and currently a sophomore at Minerva Schools at KGI, California, USA. I was inspired by Monica Marcu\u2019s book, The Miracle Tree, to research with a team back in Nigeria on the blood regulatory power of the contents of the leaves of a very medicinal plant. It is a herbal plant that has just drawn a lot of attention in its potential to cure over three hundred ailments. This is the Moringa Oleifera. We experimented on Wistar albino rats. The idea was to inject alloxan intraperitoneally to all groups of Wistar albino rats with healthy working pancreas (alloxan increases blood sugar level, thus inducing hyperglycaemia or making them \u201cpseudo-diabetic\u201d). The bioactive agents of moringa leaves were extracted with ethanol and water, and two groups of the rats were treated each with these contents. An additional group was treated with synthetic insulin (insulin is a natural blood regulatory hormone that brings down blood sugar level), and all three groups were observed. We discovered that the group of Wistar albino rats treated with the bioactive agents of the moringa leaves extracted with water had a SIGNIFICANTLY SIMILAR blood sugar level as those treated with synthetic insulin, and less significant with those treated with ethanol. This unearthened two truths. First, moringa has powerful blood regulatory effects, almost equivalent to the natural insulin. Secondly, water is a better extraction agent than ethanol, unlike the case for many other plant leaves. Aside its blood regulatory power, moringa also cures diarrhea, and many other bacterial and fungal infections. It is also a healthy store for numerous nutrients, vitamins and amino acids. It also thrives very well in these tropical regions of Africa, especially the Southern Nigeria. Armed with this knowledge, I took up the entrepreneurial project of making moringa teas using tea bags because this would not only help a lot of poor people in Nigeria, and Africa in general, who cannot afford or obtain quality health care, but would be a cheap and accessible way of maintaining a healthy lifestyle. Furthermore, since water is a good extraction agent for moringa, moringa teas would provide consumers the maximal health benefits. Even though, I have not had the necessary funding and have been self-funding this project, my motivation to help people live longer and healthier has kept this dream going, and I have not tired out in bringing this to fruition. I am still conducting researches and experiments on my tea, and I have just purchased about two plots of land for moringa farming. I would still need to set up an industry where these teas will be processed.\nThis is good news to diabetic sufferers in Africa; it is good news to poor children and families in Africa who cannot afford quality health care. This is good news to hypertensive patients and the obese. This is good news to Africa. My dream is that this project greatly lowers mortality rate in Africa, and if we are not being too optimistic, perhaps...just perhaps, we may begin to realize stronger development.\nA link to the paper we published on the experiment with Wistar albino rats: http://article.sapub.org/10.5923.j.diabetes.20160503.02.html', u'entity_id': 725, u'annotation_id': 4596, u'tag_id': 26, u'entity_type': u'post'}, {u'quote': u'While there are significant problems with the city\u2019s public health infrastructure, they do provide much of the emergency and chronic care here. We realize that there needs to be support for people needing to navigate these without the fear of accruing a huge amount debt, alongside the emphasis of practices that will ultimately lessen dependence on them. The spaces dedicated to holistic medicine or alternative care are largely inaccessible to large portions of the population because they exist for those who can afford them. For these reasons, our center is meant to involve community members, help us understand the care-related skills we already have, and be an informational resource for accessing all types of health modalities. We have public open times for the community, staffed by one of our members, to assist in that process.', u'entity_id': 5886, u'annotation_id': 4595, u'tag_id': 26, u'entity_type': u'post'}, {u'quote': u'The spaces dedicated to holistic medicine or alternative care are largely inaccessible to large portions of the population because they exist for those who can afford them.', u'entity_id': 5886, u'annotation_id': 4594, u'tag_id': 26, u'entity_type': u'post'}, {u'quote': u'affordable health', u'entity_id': 6272, u'annotation_id': 12499, u'tag_id': 2616, u'entity_type': u'post'}, {u'quote': u"linking this with @baderdean 's concern on the opensource collaboration within the African communities, also check the link in maping github in this comment on his topic. how do you think an african-african collaboration can come into action, even within communities not governments ( as you mentioned Gov's in Africa tend to trust European/US entities rather than their own people )", u'entity_id': 38834, u'annotation_id': 11847, u'tag_id': 1937, u'entity_type': u'comment'}, {u'quote': u'But\xa0just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group\u2019s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as \u201ccollective effervescence\u201d. This is \u2018aftercare\u2019, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of \u2018mutual aftercare\u2019. Young people seem to be doing similar things in digital spaces, and I wanted to find out how.', u'entity_id': 548, u'annotation_id': 4598, u'tag_id': 27, u'entity_type': u'post'}, {u'quote': u'he aim is to focus on reducing\xa0the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.', u'entity_id': 841, u'annotation_id': 4605, u'tag_id': 28, u'entity_type': u'post'}, {u'quote': u'The UK Government (and others) are looking at the issue as a major priority, given our aging population as the baby boom generation feed through and medical advances mean longer lives... Meeting the cost is a big debate here, especially in a time of "austerity" and widescale removal of central government funding.', u'entity_id': 27817, u'annotation_id': 4604, u'tag_id': 28, u'entity_type': u'comment'}, {u'quote': u'What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That\u2019s our dream.\xa0\nA bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix). \xa0It is a familiar story.\xa0 The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly.\nAt the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population\u2019s increasingly complex care needs.\nAt the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the "growth opportunities\u201d. \xa0The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff.\nCaring for Life is a diverse team has come together to seek a better solution. We are inspired by:\n\nopen source communities, that harness collective intelligence to find new solutions to old problems;\nnetworked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large.\ntraditional community-based approaches to care-giving that are human-centred and sustainable.\n\nWe intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see. \xa0Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK.\nA key operating principle will be to involve all "stakeholders".\xa0 Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture.\nCare home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person\'s "support system". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected.\nLegal structure:\xa0 Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home. \xa0There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability.\nGetting started:\xa0 Our intent is to start by acquiring control of one care home.\xa0 In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.\xa0 This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.\xa0 The home is currently subject to "special measures\u201d, imposed by the Care Quality Commission.', u'entity_id': 758, u'annotation_id': 4603, u'tag_id': 28, u'entity_type': u'post'}, {u'quote': u'My 1945-1960\xa0"boomer" generation is now heading into retirement, fixed incomes, scant savings and other common attributes. \xa0This has always been the case with elders as a whole, but with my generation and my kids\' equally large "millenial" generation, the sheer numbers of people needing care are about to go sharply up and remain there for decades.', u'entity_id': 23372, u'annotation_id': 4602, u'tag_id': 28, u'entity_type': u'comment'}, {u'quote': u'Speaking as an American at the\xa0age when living parents are all advanced seniors -\xa0and many of those seniors live in homes and facilities,\xa0while it can be said without danger of over-generalizing, that to many in my age group, having your late-age senior living with you is seen as an inconvenience.', u'entity_id': 21579, u'annotation_id': 4601, u'tag_id': 28, u'entity_type': u'comment'}, {u'quote': u'For exemple the old people are separated from the rest of the adults, they don\u2019t have a connection. Why do you do that? We don\u2019t talk about generational society, we don\u2019t attach value to\xa0the older people\xa0here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity', u'entity_id': 790, u'annotation_id': 4600, u'tag_id': 28, u'entity_type': u'post'}, {u'quote': u"something about growing mature that makes one more and more into their own ways, and less willing to take on 'adventurous' lifestyles.", u'entity_id': 8933, u'annotation_id': 4599, u'tag_id': 28, u'entity_type': u'comment'}, {u'quote': u"A lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to\xa0help\xa0of their agency;\xa0their freedom to act normally.", u'entity_id': 20040, u'annotation_id': 4606, u'tag_id': 29, u'entity_type': u'comment'}, {u'quote': u'Agile kick off at WeMake\nJune the 13, 2017\n\xa0\nTogether with Chiara e Silvia, from the WeMake - OpenCare MIR team, we explored the main steps of the Agile Planning, which made us able to focus more on our project ResQ.\nFor those who are not familiar with this methodology, Agile is an effective way of working that helps teams in identifying their unique value proposition, and how to make it real.\nTherefore we went through the following steps:\n\n\n01_Why are we here\n \n\n02_The elevator pitch\n \n\n03_The product box\n \n\n04_The Not list\n \n\n05_Meet your neighbours\n \n\n06_What keep us up at night\n \n\n07_Size it up\n \n\nAs following a deeper view on each one.', u'entity_id': 580, u'annotation_id': 4610, u'tag_id': 30, u'entity_type': u'post'}, {u'quote': u'Thank you @Costantino!\nAfter this pivot we also had an interesting workshop with \xa0@silviad.ambrosio and @ChiaraFrr on the Agile methodologies that helped us to focus on what we are doing and how to do it.\nIn the following link is an article that go deeper in the details of this activity.\nhttps://edgeryders.eu/en/agile-kick-off-at-wemake', u'entity_id': 14618, u'annotation_id': 4609, u'tag_id': 30, u'entity_type': u'comment'}, {u'quote': u'I did my thesis on correlations between phenotype characteristics and seed yield (+ genetic diversity) in red clover. I know first hand the horrors of measuring the size of 10.000 tiny flowers, tagging genetic barcodes and the weeks of zombie computer work this brings. Luckily, research institutions have students and interns to do this stuff . You make a very valid point: phenotypic research can benefit a lot from citizen science.', u'entity_id': 18972, u'annotation_id': 11920, u'tag_id': 1952, u'entity_type': u'comment'}, {u'quote': u'In order to reduce the suffering of people from diseases and hunger, a program was developed to\xa0promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled \u2018Rapid Livelihoods Rebuilding via Agriculture & Health\xa0based Livelihood initiatives\u2019 (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to\xa0reconstruct\xa0livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by\xa0flooding.', u'entity_id': 855, u'annotation_id': 4616, u'tag_id': 1952, u'entity_type': u'post'}, {u'quote': u"I focussed on agriculture,\xa0I have created a project (never realized) that was called Openphenotyping, it was about democratic plant phenotyping ( http://www.thefreedictionary.com/Phenotyping ) and it aimed to give the power of biotechnology to small farmers' cooperatives to maintain and exalt biodiversity, also, \xa0through genetic modification.", u'entity_id': 18966, u'annotation_id': 4615, u'tag_id': 1952, u'entity_type': u'comment'}, {u'quote': u"The project is to be developed for individuals, hobby-farmers to the mega agricultural industries and it's not only for B2B bussineses.\xa0\nWe have more than a lot of arguments covering our requests and developing. Investing on this project will bring financial and social goods and will give a very effective and professional solution to this space of the working cycle.\n\nThe website is just an presentation of our main activities, but programming and developing is something we do on other behalfs of time.\nYou can also visit\xa0the\xa0social network, founded\xa0by our Team member Mr. Herolind Luzha and it's under https://www.itrendin.com/ to find or download it on forAndroid or IOS.\n\nWe have 2 type of fundraising presentations and also a very precissive description of the project which i would gladly also share with you.", u'entity_id': 14028, u'annotation_id': 4614, u'tag_id': 1952, u'entity_type': u'comment'}, {u'quote': u"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land.\xa0http://www.phoenixconnections.net", u'entity_id': 571, u'annotation_id': 4613, u'tag_id': 1952, u'entity_type': u'post'}, {u'quote': u'What can you make with old plastic bottles? A vase? A flowerpot? \u2026 an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they\u2019ve helped people to install these units-- which don\u2019t need electricity to function-- in more than 25,000 households in developing areas of the country.\n\u201cMost people live in tin huts\u2026 in the summer, it\u2019s like being in sauna in the Sahara\u201d', u'entity_id': 33744, u'annotation_id': 4618, u'tag_id': 34, u'entity_type': u'post'}, {u'quote': u'He also drinks alcohol a lot - I have always asssumed this is because he finds life challenging, because he is so sensitive.\xa0 Having said this, he is still creative and charming and loveable. But he is hard to be with sometimes.\nI think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.', u'entity_id': 16370, u'annotation_id': 4619, u'tag_id': 35, u'entity_type': u'comment'}, {u'quote': u"Nice to meet you. Thank you for your comment. Well for the alcohol-free space, I would need:\xa0\n1) One or two dedicated and trustworthy people who are as passionate as me about the idea, in Galway who could commit part time hours to work in it, and possibly be coloborators or managers with me, because I am not sure I want to be alone in the decision making and managing at this time.\n2) Funding and resources: I would need start up funding for the first couple of years to get the project to a self-financing stage, and a trusted accountant and solisitor to take care of such things.\xa0\n3) A suitable venue/building in the city centre. It would be ideal to own a building, or be donated one, but I would settle for renting, it is more important that the space exists.\n4) I would need to be able to give my full time and energy commitment to the project for a couple of years. (this is where a partner would be handy)\xa0\nIn the mean time what I could be doing is running regular monthly/twice monthly events in rented spaces, to build up a customer following and awareness of the project. This would require a smaller investment of money, resources and time.\xa0\nI currenlty do not have any money to invest in either of these options.\xa0\nI would need to make money from it to make it sustainable and be able to dedicate enough time to make it the best it can be.\xa0\nThanks for asking, it has helped me think about where I am and where I'm going", u'entity_id': 17562, u'annotation_id': 4621, u'tag_id': 36, u'entity_type': u'comment'}, {u'quote': u'My dream is to create an alcohol-free social and entertainment venue in Galway. Ireland desperately needs alcohol-free spaces. An inclusive space for people to come together with music, dancing and activities, with rooms for workshops, classes and meetings.', u'entity_id': 808, u'annotation_id': 4620, u'tag_id': 36, u'entity_type': u'post'}, {u'quote': u'Tutto \xe8 nato da una nostra esperienza\n\nMonica: \u201cNicoletta? Andiamo a mangiare una pizza?\u201d\xa0\n\nNicoletta: \u201cCerto! Prenoto per due al solito posto dove puoi mangiare anche tu?\u201d\xa0\n\nM.\u201cOk!\u201d.\n\nRistoratore: \u201cBuona sera Signore, avete prenotato?\u201d\n\nN. \u201cS\xec, per due; nome Nicoletta\u201d. -\n\nEccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l\u2019ordine.\xa0\n\nN.\u201cPer me una prosciutto e funghi\u201d\n\nM. \u201cIo invece..premetto: sono intollerante al glutine e al lattosio...\u201d il cameriere annuisce \u201c...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...\u201d\n\nC.\u201cS\xec signora\u201d\xa0\n\nM.\u201dBene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini\u201d\n\nC. \u201cDa bere?\u201d\n\nN. \u201dUna birra per me!\u201d\n\nC.\u201dE lei?\u201d\n\nM.\u201dIo? Che cosa posso bere che non sia acqua?\u201d\n\nC.\u201dAbbiamo due birre senza glutine\u201d\n\nM.\u201dQuali?\u201d\n\nC.\u201dLa Daura e la Peroni\u201d.\n\nGiro lo sguardo verso Nicoletta con un\u2019espressione rassegnata e penso \u201d...sempre quelle...\u201d\n\nPassano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca \xe9 terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame per\xf2 e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - \u201cChiss\xe0\u201d.\n\nArriva la pizza e a quel punto, mi assale lo sconforto pi\xf9 profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia...\n\nNon ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio!\n\nN. \u201cMonica? Mi fai assaggiare?\u201d\n\nM.\u201dCerto!\u201d\n\nN.\u201d...Mmm...il sapore non \xe8 male ma questa non \xe8 una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. \xc8 proprio triste...\u201d\xa0\n\nM.\u201c...Gi\xe0...\u201d\n\n---------------------------------\n\nQuesta serata per Monica e Nicoletta non \xe8 stata l\u2019unica; altre l\u2019avevano preceduta e altre ancora ne seguirono.\n\nAd ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso:\n\n\n\n\nMonica elenca ad alta voce al cameriere le sue intolleranze,\xa0\n\n\nil cameriere annuisce puntualmente,\xa0\n\n\nMonica\xa0 si barcamena nella lettura di menu labirintici (a volte privi dell\u2019elenco degli allergeni)\n\n\ndalla cucina arriva l\u2019avviso che l\u2019alimento richiesto non \xe8 disponibile\n\n\nMonica si accontenta di \u201cci\xf2 che propone la cucina\u201d nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori\n\n\n\nE in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All\u2019interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.\xa0 \xa0\n\nQui in allegato la pizza di Monica', u'entity_id': 824, u'annotation_id': 11921, u'tag_id': 1953, u'entity_type': u'post'}, {u'quote': u'Tutto \xe8 nato da una nostra esperienza\nMonica: \u201cNicoletta? Andiamo a mangiare una pizza?\u201d\xa0\nNicoletta: \u201cCerto! Prenoto per due al solito posto dove puoi mangiare anche tu?\u201d\xa0\nM.\u201cOk!\u201d.\nRistoratore: \u201cBuona sera Signore, avete prenotato?\u201d\nN. \u201cS\xec, per due; nome Nicoletta\u201d. -\nEccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l\u2019ordine.\xa0\nN.\u201cPer me una prosciutto e funghi\u201d\nM. \u201cIo invece..premetto: sono intollerante al glutine e al lattosio...\u201d il cameriere annuisce \u201c...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...\u201d\nC.\u201cS\xec signora\u201d\xa0\nM.\u201dBene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini\u201d\nC. \u201cDa bere?\u201d\nN. \u201dUna birra per me!\u201d\nC.\u201dE lei?\u201d\nM.\u201dIo? Che cosa posso bere che non sia acqua?\u201d\nC.\u201dAbbiamo due birre senza glutine\u201d\nM.\u201dQuali?\u201d\nC.\u201dLa Daura e la Peroni\u201d.\nGiro lo sguardo verso Nicoletta con un\u2019espressione rassegnata e penso \u201d...sempre quelle...\u201d\nPassano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca \xe9 terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame per\xf2 e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - \u201cChiss\xe0\u201d.\nArriva la pizza e a quel punto, mi assale lo sconforto pi\xf9 profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia...\nNon ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio!\nN. \u201cMonica? Mi fai assaggiare?\u201d\nM.\u201dCerto!\u201d\nN.\u201d...Mmm...il sapore non \xe8 male ma questa non \xe8 una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. \xc8 proprio triste...\u201d\xa0\nM.\u201c...Gi\xe0...\u201d\n---------------------------------\nQuesta serata per Monica e Nicoletta non \xe8 stata l\u2019unica; altre l\u2019avevano preceduta e altre ancora ne seguirono.\nAd ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso:\n\nMonica elenca ad alta voce al cameriere le sue intolleranze,\xa0\nil cameriere annuisce puntualmente,\xa0\nMonica\xa0 si barcamena nella lettura di menu labirintici (a volte privi dell\u2019elenco degli allergeni)\ndalla cucina arriva l\u2019avviso che l\u2019alimento richiesto non \xe8 disponibile\nMonica si accontenta di \u201cci\xf2 che propone la cucina\u201d nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori\n\n\nE in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All\u2019interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.\xa0 \xa0\nQui in allegato la pizza di Monica', u'entity_id': 824, u'annotation_id': 4622, u'tag_id': 1953, u'entity_type': u'post'}, {u'quote': u"I agree with all your proposals, but I was talking about alternative families for hetero people, people who are attracted to the opposite sex, but didn't meet yet the right partner.\n\nThese people can't use the same sex marriage solution.\n\nFriends are great if they are friends for life. But how can you actually make them stay\xa0 for life...because friends might decide one day to build their own family, so at that point they will be less present ...\n\nHow to make it work ?\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 13066, u'annotation_id': 11922, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u'There are not many fablabs, makerspaces or \u2018protofablabs\u2019 in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.', u'entity_id': 37182, u'annotation_id': 11787, u'tag_id': 39, u'entity_type': u'post'}, {u'quote': u'My early encounters with the Edgreryders platform, I\u2019ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it\u2019s at odds with standard linear project trajectories and ways of working. So perhaps I\u2019m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.', u'entity_id': 6462, u'annotation_id': 4638, u'tag_id': 39, u'entity_type': u'post'}, {u'quote': u"nice project!\nFor what I see there are so many valuable initiatives around the world, the main issue is that there's lack of funding for them and the general overload of informations makes it very difficult to understand what is important and what is not.\n\nIf we want to reach a profound change in this society we should aim to create new innovative form of credits that promote pluralities and radical new ideas while giving enough security to people that trace alternative paths.\n\nSharing economy platforms could be used to power these activities because they unlocked a large number of resources that could be redirected towards projects thanks to a crowdaction.\n\nP.s.\nI will probably live for some weeks in the netherlands this summer, let me know if you want to meet!", u'entity_id': 22115, u'annotation_id': 4637, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 4636, u'tag_id': 39, u'entity_type': u'post'}, {u'quote': u'In my experience with alternative research\xa0models, and especially when interacting with classically trained researchers, it does not occur to them that there\xa0are possible correlations between the research process and the value of the research outcomes. They are\xa0locked in how they have been doing things for years, naturally.', u'entity_id': 14733, u'annotation_id': 4635, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u'Inspiring, @KiraVde and @ivan (welcome back to both of you!). But I don\'t think it\'s quite that simple. "Being different", going by a different value system, is itself entropic. Here\'s why: to accomplish anything, we humans need other humans. Other humans are attracted by "successful" (as per the dominant canon of what "successful" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your\xa0chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners.\xa0So, being perceived as successful increases your chances of actually being successful.\xa0\nThat\'s not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.\xa0\nAn unfortunate consequence of this is that, the more different you want to be, the more energy\xa0you need to invest promoting yourself. The message is "look at me, I am not a failure, I am a success by my own measure". Social media are full of this, often cloaked in hyper-individualistic narratives, of the "I quit my day job to follow my dream" type. Which is ironic, because\xa0hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need\xa0for social acceptance.', u'entity_id': 24963, u'annotation_id': 4634, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 4633, u'tag_id': 39, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11006, u'annotation_id': 4632, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u"I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family\xa0 consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended/alternative families.", u'entity_id': 12379, u'annotation_id': 4631, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 4630, u'tag_id': 39, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 4629, u'tag_id': 39, u'entity_type': u'post'}, {u'quote': u"Hi @Aravella, \xa0Alternative school is never been taken before. \xa0The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again. \xa0Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime. \xa0Communal Library is rare, there are old books since 70's to 90's sometime \xa0no book but lot of dust and ruins.", u'entity_id': 11993, u'annotation_id': 4628, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u"Hi @Mishel! What about alternative schools?\xa0Solidarity teachers and maybe school from distance. Through radio or internet if it's possible. And not only typical lessons but also music, dance, poetry e.t.c. What about libraries in Magadascar?", u'entity_id': 10044, u'annotation_id': 4627, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u'I don\'t speak German so I used google translate to understand your post\xa0(English translation here). If I got it well, you have said wise words: we don\'t need to reach the care utopia with normalized approaches, but with trial and error. Are simulator workshops something to look into with more detail then? Any other tells or resources you know, do tell.\xa0that would be useful to OpenCare where we are supposed to look into promising ideas and prototype them - but prototyping in the "lab" so to speak could mean a due dilligence fail test (?) hm.', u'entity_id': 9977, u'annotation_id': 4626, u'tag_id': 39, u'entity_type': u'comment'}, {u'quote': u'alternative currencies and food economies;', u'entity_id': 560, u'annotation_id': 4640, u'tag_id': 41, u'entity_type': u'post'}, {u'quote': u'The project is inspiring in its own right, but what makes it even more important and intriguing, is the fact that it is further linked with the efforts to create a new, fair and solidarity economy on a larger scale. Having such a vision, the group of refugees and solidary comrades that are supporting them on this, have built a collaborative network between the cooperative R2R call center and cooperative grocery stores in the area of Thessaloniki, where the refugee operators of the call center can cover most of their food and other basic needs, using a digital, alternative currency that is called Faircoin.', u'entity_id': 792, u'annotation_id': 4639, u'tag_id': 41, u'entity_type': u'post'}, {u'quote': u'Despite an image of desperate, crumbling Greece that some people might have nowadays, those who investigate alternative economies and societies, those interested in self-organisation and changing the status quo recognize the country\u2019s revolutionary role. One of the finest examples is SC!FY, a young organization based in Athens which in the course of four years managed to get a lot of stuff done. \n\nMy brother, George (Giannakopoulos) has been an Artificial Intelligence researcher who has worked both in Greece and the North of Italy for quite a few years and has had programming and IT consulting experience for over 15 years in the industry. He has been collaborating with researchers from both sides of the Atlantic. What he was experiencing as a researcher, was beyond his imagination. He puts it nicely:\n\n"EU is spending billions of euros in research projects. Consortia of research institutes and big EU companies receive huge amounts of money to produce amazing technologies. Technologies that need only a few months of work to become great, potentially life\xadchanging products. But most of them remain unused for years within the walls of the institutes that produce them. It seems absurd, but rarely does anyone undertake the little work that is required to bring top notch scientific results to our everyday lives. It is also common that researchers simply cannot grasp the direct impact a technology they create can have on everyday life, if applied in a friendly, accessible way."\n\nHe wanted to see it change - and so in 2012 he founded an organisation with a mission to publish and transform that knowledge into ready to use solutions. \n\nHe could not take it any longer. So, he and his cordial friend Vassilis (Salapatas) decided to bridge this gap between research and society. In 2012 they formed SciFY (Science For You), an Not for profit organization that does exactly this: take scientific results, and then form a community of entrepreneurs, volunteers, researchers and end users to build useful final products to solve everyday problems. And they offer them for free. To all.\n\nFor the first two years we strategically decided to prove that we are serious about what we do, we are able to deliver and \u2026 that we are not crooks (since trust towards NGOs has been very low in Greece after some scandals)\n\nWe also had to prove we are using freely available results (these are more and more common in EU, which requires many of the research it funds to publish their findings on the most open licenses possible). In the last 2,5 years, we\u2019ve started looking for funding and this is when plenty of things got done. \n\nWe have been awarded by the President of the Hellenic Republic, we\u2019ve built collaborations with most of the major Greek institutions - foundations, institutes, universities etc. We have a feeling that our impact is rather disproportionate compared to our size  But we really think this happens thanks to our focus on communities and our passion for getting things done. \n\nYou can read about our work in our annual report for 2015. \n\nThe model that we\u2019ve introduced to our work is to create communities around each of the ideas from the very beginning. We\u2019re also often asked to solve a particular problem by the very communities. This is one of the keys to our success - we\u2019re surrounded by people who want to see and use the results of our work. And they\u2019re actively taking part in the process. It helps us create a space where ideas, needs, opinions circulate and are being taken into account. \n\nSC!FY is working now in four domains - areas of interest.\n\nThe first area of interest is care-related and it focuses on creating assistive technologies for people with disabilities, and on offering them for free (and under open source licences). Among these are games for blind children, which have been developed in collaboration with schools for the blind - they helped us design them, tested and now use them. The process allowed us to bring together blind and non-blind people to work together. These games have more than 3,500 downloads from all around the world, got much media attention - and we constantly get positive feedback from people using them. So we continue developing more games for the bind. :-)\n\nWe\u2019ve also created a smartphone app called ICSee for people with low vision that applies special filters to the video captured by the phone\u2019s camera and allows users to read a restaurant menu or signs on the door. It\u2019s also available for free and under open source licences on Google Play.. \n\nWe\u2019re finishing the development of Talk and Play, a platform for people with motor disabilities, that will kick-off in late September. This application will help people who can\u2019t move or talk to communicate with their environment, watch videos, listen to music, or play games that support their rehabilitation. \n\nWe have created more solutions in this area, that you can find here.\n\nThe second area of our work is e- democracy. In this strand, we\u2019ve built an open source platform DemocracIT that supports the process of public consultation, which is theoretically common in Greece, but tedious in reality. We\u2019ve tested it and presented to the governmental bodies. Besides, there is also ActiveCommons platform, which we\u2019ve designed to foster collaboration for the common good between It caters organisations, NGOs and groups of people who want to change something and need an effective tool for collaboration. \n\nThe third scope of our work is supporting civil society with our IT skills. One of the results of such collaborations is a volunteer management platform - available for free, as well. \n\nAnd finally, the fourth pillar of our work is the Artificial Intelligence business. One of the outcomes of our work is NewSum that produces automated news summaries, and works in many languages. Or PServer application, that helps you personalise other applications. \n\nHow do you cope with finding financing outside your own country? Do you struggle building or managing communities that could support your work and contribute towards making it time and cost effective? What are the obstacles you face in terms of accessing and using scientific research? Talk to us by leaving a comment.', u'entity_id': 528, u'annotation_id': 11923, u'tag_id': 1955, u'entity_type': u'post'}, {u'quote': u'-How Banks are working and whats the difference with ethical banks;\n-How can we build up communities? \u201cI\u2019m in a gap year\u201d', u'entity_id': 6372, u'annotation_id': 4647, u'tag_id': 1955, u'entity_type': u'post'}, {u'quote': u'In this comment https://edgeryders.eu/en/comment/27263#comment-27263 , I highlight a strategy for the activation of the platform.\nBasically, for and Airbnb-like platform is good to use this system because you don\'t have to maximize the benefit of the peer producers (as it should be for Uber for example). You can maximize the benefit for the society (for this reason fairbnb should be a common, not owned just by certain users e.g. hosts).\nThere are many reasons why Airbnb fit and on why it should be the platform to target in order to attempt to change the digital economy.\nI have been thinking and studying a lot and I would love to write about it. I made some months ago the structure for a green paper call "Overthrowing Power, one Platform at a Time" https://docs.google.com/document/d/1aeZAdKdbF1N2hexDO8VMqlzN6XUofumpQW2KTAgHwPw/edit?usp=sharing .\nif someone is interested in developing this, it would be a pleasure to do it .\nHere there are some articles, that I found interesting, on platforms (related to the technical part and on growth hacking/critical mass in particular) https://workflowy.com/s/fRXqUUze22\nWe also did an Horizon2020 call (we didn\'t win) but is a huge work and I can share it if you want.', u'entity_id': 11398, u'annotation_id': 4646, u'tag_id': 1955, u'entity_type': u'comment'}, {u'quote': u'In the last 5/10 years, our economy has been "platformed."\nThe "disruption" didn\'t allow proper reflection and to take action to create the most desirable platforms for users.\nWe have enough data on the externalities of this platforms and the extent of the impact on our economies, it\'s now possible to analyze what brought us here, the opportunity that we should investigate and the challenges that we need to face.', u'entity_id': 6300, u'annotation_id': 4645, u'tag_id': 1955, u'entity_type': u'post'}, {u'quote': u'FairCoop is, in fact, a lot of projects with a unifying mission behind all of them: to build alternative, grassroots-driven economy, which will be participatory, fair and belong to the people. All of the members of our global collective want to see that happen. \n\xa0\nThe FairCoop Thessaloniki is a local group linked to the global movement. We\u2019re all dealing in different ways with the establishment of tools and processes that would bring about alternative, cooperative economies. \n\xa0\nIn the case of our city, to some extent, it\u2019s done by implementation of alternative cryptocurrency, faircoin, developed by the FairCoop. We try to understand ways in which this currency, and a local currency introduced after the crisis, can coexist and supplement each other. In any case, the goal is to free ourselves from proprietary technologies and capitalist banking systems - by creating a parallel circular model, ideally connecting and supporting a whole ecosystem of projects locally and globally. \n\xa0\nThere is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community\u2019s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds. \n\xa0\nWe also plan to replace the public system with a cooperative one. For now, it\u2019s a hurdle - but in the future, it will be possible. The condition? The strong community behind it. \n\xa0\nFairCoop exists since 2 years, and in Thessaloniki, it started a few months ago. We have links with dozens of cooperatives, organizations, initiatives and communities - such as Bitcoin community, P2P foundation, Catalonia Cooperative, etc. We\u2019ve brought on board more than 1000 people so far. Yet, there\u2019s still a lot to be done. We need to connect and build stronger alliances even in the cities - in Thessaloniki, many existing initiatives remain disconnected from each other. We need to develop models of integral cooperation on different levels. Bring decentralized technologies to local communities to make them more resilient. And seed the idea of cooperation, which will replace competition.', u'entity_id': 741, u'annotation_id': 4644, u'tag_id': 1955, u'entity_type': u'post'}, {u'quote': u'Our group is based in Thessaloniki but it is connected with a global network of tools and projects with the vision to expand an alternative and fair economy through cooperation, or let\u2019s say to create sustainable economic solutions through cooperativism. In Greece there is already many cooperatives, especially created as a result of the economic crisis, either under a legal form or remaining informal, and we want to support their networking as well as to expand the network through creating new cooperative initiatives.', u'entity_id': 24572, u'annotation_id': 4643, u'tag_id': 1955, u'entity_type': u'comment'}, {u'quote': u"I think a basic income for everyone would be a good start to an alternative economy. It would tackle the fear of not having enough. Thus, everyone of us could contribute freely to society providing things and services we're good at. For me (traumatherapist on wheels) it would be a perfect solution : be able to work / to give to the world without having to think about 'will I earn enough mony doing so?'\nIn Finland, a basic income experiment is on its way - I am very curious what the outcome will be, and, eventually, how this wil change economy and society!", u'entity_id': 27793, u'annotation_id': 4642, u'tag_id': 1955, u'entity_type': u'comment'}, {u'quote': u'I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Dina', u'entity_id': 24581, u'annotation_id': 4641, u'tag_id': 1955, u'entity_type': u'comment'}, {u'quote': u'I really enjoyed the game. I am interested in family, and that\u2019s where the care starts. Some people are now looking into chosen families \u2013 me too, as long as I have increased access to travel. But it feels weird to ask for health to chosen families, people who are not blood. Maybe that\u2019s old fashioned of me. But I would like to talk about family. Also: are we creating a kind of tyranny of reputation scores, a kind of God of judges us on the basis of our digitally encoded accomplishments?\n\n\nDenise:', u'entity_id': 38811, u'annotation_id': 11753, u'tag_id': 43, u'entity_type': u'post'}, {u'quote': u'Hello @M\xf8rbeck, good to meet you.\xa0\nI am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus.\nThe traditional way to do this was this: you would leave your parents\' house, marry,\xa0settle down with your spouse and have children. This produced a "one size fits all" world, with\xa0most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are)\xa0allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized.\xa0Is this broadly correct?\nBecause if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!\xa0\nhttps://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups', u'entity_id': 6682, u'annotation_id': 4649, u'tag_id': 43, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 4648, u'tag_id': 43, u'entity_type': u'post'}, {u'quote': u'Wait a moment. Masses of self-organized people, with no money and no organizations, that beat well-selected and well-paid professionals on their ground? Scene already seen. It was Wikipedia that stomped the Encyclopedia Britannica. It was OpenStreetMap that, giving its data, vaporized the business of Garmin and TomTom. They were groups on Facebook who coordinated rescue initiatives a few hours after the earthquake in Nepal and the flood in Tbilisi this spring. They were the inexperienced and coordinated Internet gamers who changed the rules of the political game, coming to break down entire regimes in Egypt, Tunisia and Ukraine.', u'entity_id': 4913, u'annotation_id': 13125, u'tag_id': 2251, u'entity_type': u'post'}, {u'quote': u'there are 68 clinics organized in Greece . Take a moment to absorb the implications of this fact: in four years, thousands of enterprising Greeks, without money, without a command structure, without even knowing, have created a parallel health service that succeeds where the public health service and private healthcare fail: it maintains in relative security the poorest sections of the population. It should be noted: The Greek state has spent over 6 billion euros in health care in 2011.', u'entity_id': 4913, u'annotation_id': 13124, u'tag_id': 2251, u'entity_type': u'post'}, {u'quote': u"I think a platform like fairbnb\xa0will be a great alternative to those who don't agree with some of Airbnb's practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?", u'entity_id': 14269, u'annotation_id': 4658, u'tag_id': 2251, u'entity_type': u'comment'}, {u'quote': u"I do agree that until we figure out how to create valid alternatives, current platforms are indispensable.. there's no wayback... That's why we need to act to create a fairer digital economy where interests of people are central instead of profit, some of this platforms are almost impossible to create an alternative to, others I believe not.", u'entity_id': 10667, u'annotation_id': 4657, u'tag_id': 2251, u'entity_type': u'comment'}, {u'quote': u'The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb).\nSince then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community.\nThe platform with shared ownership and control will be non-extractive, inclusive and cooperative.', u'entity_id': 829, u'annotation_id': 4656, u'tag_id': 2251, u'entity_type': u'post'}, {u'quote': u'Action Research through participatory video making\nIn the capacity of co-facilitator I am working together with Christabel Buchanan -from the Coventry Centre for Agroecology Water and Resilience, on \u2018Real Food Utopias\u2019: an action research project mapping and tracking alternative food systems and economies in and around Thessaloniki. We made an open call inviting individuals from a variety of formal and informal groups. Through this process we came up collectively with a series of themes to be further explored. We then held training sessions on participatory video-making (from story boarding to collective editing) and then formed working groups for each theme. Then we organise public showings to get feedback and to instigate discussion and hopefully action by community members -like the creation of a Food Policy Council.', u'entity_id': 560, u'annotation_id': 4655, u'tag_id': 2251, u'entity_type': u'post'}, {u'quote': u'context, we want to be able to provide some care for people so that their minor health concerns can be treated without having to go to the hospital. \xa0But obviously always cognizant of our own limitations in care.', u'entity_id': 22039, u'annotation_id': 4654, u'tag_id': 2251, u'entity_type': u'comment'}, {u'quote': u'setting up complementary infrastructure\xa0to the current state provided one, enabling\xa0training for non-medical workers,\xa0prevention coupled with basic treatment..', u'entity_id': 24022, u'annotation_id': 4653, u'tag_id': 2251, u'entity_type': u'comment'}, {u'quote': u'reate infrastructures', u'entity_id': 521, u'annotation_id': 4652, u'tag_id': 2251, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 4651, u'tag_id': 2251, u'entity_type': u'post'}, {u'quote': u'I\'m reminded of this take on medicine every time I read others acknowledging\xa0alternative therapies - somehow mediated by different values (human treatment, social medicine, flexibility, group therapy..):\xa0"Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki." @steelweaver, meet @Sharon_Kinnane !', u'entity_id': 26055, u'annotation_id': 11904, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u'Dandelion "Pissenlit" roots for cure cacer, Yes it\'s possible and without fees!!\n\n\xa0There are many different types of cancer any people get killed by it. It\'s enough we have found the cure for many of them ( prostate, intestine, lungs ,...)\n\nMany people aboard have been heal by this roots when they heard about it, they stop using chimiotherapy ( chimiotherapy = traitement used for having a long day of living, is not enough efficient!!! The bad effect of this treatment is not his non efficiency but also killing the healthy cells, even if he kill the cancer cells inside body.!!! From this treatment there are some bad effect like, appetiteless, loss of weight, weakness of antibody, ...)\xa0\n\nActually, 7 people here in Madagascar have been heal by this treatment when they heard about it, and follow the instructions. It\'s \xa0a close friend of mine who have been sick by "liver and intestine" cacer. He was up to follow chimiotherapy \xa0treatment so I told him to follow this natural treatment \xa0first before he decided to spend \xa0money on chimiotherapy. When I heard about this plant from Canadian friend, we decided to use it.\xa0\n\nHe was so happy when he gets cured after 1 week \xa0of treatment, when he decided to drink infusion from dandelion\'s root. Doctors doesn\'t find any clue of cancer on him. Maybe the phase of his cacer was primary and it\'s was easy to cure. So my conscience is restless when I heard that there are many people who suffer, dead from cancer "it\'s like non assistance of people in danger". I decided to share it with you.\xa0\n\n-THIS IS THE YOU NEED TO FOLLOW.\xa0\n\n1# You need to collect dandelion on a place where cars doesn\'t barely ride.\n\n2# non chemical insecticides or related haven\'t been sprayed on the soil where you collect it.\xa0\n\n-PREPARATION\xa0\n\nBoil 1 liter of top water, when it\'s still boiling, ad 100 grams of \xa0dandelion roots. \xa0Leave it boiling \xa0for 10 minutes ( never more never less than 10mn. It\'s has been calculate that "active elements" goes out at this moment. \xa0If it\'s more than that, it\'s will kill those active elements. \xa0When it\'s done let it get cold. This is your "drinking water for one day" the better moment for drinking much is before breakfast and dinner, also drinkable in middle time. Do it for 20 days and stop for 10 days. Keep do it again from the beginning as a cycle of one month (20 plus 10 days.)\xa0\n\nIf everything has been followed step by step in one week, we can find the changes ; inside pain goes out, \xa0patient will find appetite, this is the major factor of this treatment and it\'s make a big different between it and chimiotherapy.\xa0\n\nIf I understand and correct me if I\'m wrong!! chimiotherapy kills cancerous cells but also healthy cells. Patient get weak, lost appetite and doesn\'t have no much time for living, \xa0It\'s a kind of catalyst inside body.\xa0\n\nBut this dandelion\'s \xa0roots hunt and kill all cancerous cells inside body. \xa0After you recognize that patient is completely cured, all we have to do is care about wound healing leave by the cancer inside the body. We can keep doing it by natural method using garlic. \xa0Take one glass of hot water, \xa0scratch 3 or 4 peaces of garlic and put it inside the glass of hot water. \xa0Leave it for one night and drink it before breakfast, \xa0keep do it until its gone, \xa0or you can still buy some medecines in drug store if you want to heal \xa0wound leaved by cancer.\n\n\xa0I hope that everyone can find a way to cure and fight cancer on his own natural or chimical.\n\nIf you have any questions about this, any suggestions or critics please don\'t hesitate to write bellow\xa0\n\nDear friends Edgeryders, I wish an Happy and successful new year to each every one of you.', u'entity_id': 805, u'annotation_id': 11905, u'tag_id': 1946, u'entity_type': u'post'}, {u'quote': u'Designer nurse and community growing, a BA in business enterprise and community development, volunteers in a school garden. Outdoor classrooms. Making rural areas more part of the community. Coliving, co working and retreat, mixing mental health, art therapy, yoga/movement and ecology. Beginning to step into Open Source. In last weeks they did a project where they went to visit Cregg Castle (unused): framed as unMonastery, a co-living and coworking retreat over a short period, through the European Capital of Culture 2020 which Galway won.\xa0\u201cMy problem is I do too many things\u201d At #OpenVillage he doesn\u2019t know what he is able to host, as he\u2019s just out of running an event locally. Most relevant is unMonastery.', u'entity_id': 6360, u'annotation_id': 4480, u'tag_id': 1946, u'entity_type': u'post'}, {u'quote': u"Indeed, I call myself an 'acupuncturist' because people are familiar with the term - but a doctor or physio who has done a few weekends training in the technique can also legitimately call themselves an acupuncturist. \nIn reality, I am a 'traditional medicine practitioner' who uses a variety of techniques, including acupuncture. The main point of coming to me is for my knowledge of chinese medicine theory, my diagnostic skill and my years of training in using the needle [or cup, or hand] to effect change in the body.", u'entity_id': 18817, u'annotation_id': 4479, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 4478, u'tag_id': 1946, u'entity_type': u'post'}, {u'quote': u"Attitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'.\nI wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this?\nI should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility.\nIf you have a community library, Peter Deadman's latest might make a great addition - not only does it cover a whole range of areas [general health, pregnancy, ageing, etc] but it cites lots of western science to back up the older eastern practices.", u'entity_id': 21278, u'annotation_id': 4477, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u'Within Woodbine, the struggle for autonomy has been broken down into categories of the most urgent material necessity, meant to focus our attention on tangible goals toward building power within our community. Health autonomy is a crucial part of this. The health resource center is run by a mix of health professionals and those with informal training in various health practices. We want to re-create a sense of agency over health through a focus on the dissemination of usable, teachable skills. We are working with peers who practice herbal medicine, massage, feldenkrais, acupuncture, meditation, yoga and other forms of so called \u201calternative\u201d medicine. We are creating our own definition of wellness, one that is congruent with the realities of our time. There is also a large focus on prevention of illness, of re-fostering the idea of a healthy life, not merely the absence of disease. This is how we begin the necessary process of removing our physical and mental health from systems that would damage them further, to reclaim control over health and use it to increase our collective autonomy.', u'entity_id': 5886, u'annotation_id': 4476, u'tag_id': 1946, u'entity_type': u'post'}, {u'quote': u'@ybe thanks for your kind words, i agree with what you are saying about these two factors and this is what i tried to highlight in my article! Your traumatour project also seems super interesting and it is very exciting to see that more people are planning to visit Thessaloniki with their projects in the future! I am in contact with people working in alternative health and spiritual health projects here in Greece so I could put you in contact with them, if you are interested.', u'entity_id': 25250, u'annotation_id': 4475, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 4474, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u'e work to create ties with those who practice herbal medicines, massage, kinesiology, acupuncture, meditation, yoga and other forms of so called \u201calternative\u201d medicine.', u'entity_id': 521, u'annotation_id': 4473, u'tag_id': 1946, u'entity_type': u'post'}, {u'quote': u"What I'm getting at here is that OpenCare should also consider establish a serious approach with double scope: avoiding infiltration of quackery and protect us from accusations of quackery.", u'entity_id': 19479, u'annotation_id': 4472, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u"True, acupuncture is largely regarded as 'alternative' - at least in the West; it is integrated into mainstream healthcare in China and other East Asian countries, and increasingly in places like Israel and Australia. I would put it a bit differently - it has not been 'becoming' evidence-based in the sense of people changing how they practice. It is more a case of practitioners, who have ample experience of the effectiveness of the treatments in their own practices, looking to find ways to produce acceptable evidence to back this up so it will be more widely accepted by the mainstream.", u'entity_id': 19471, u'annotation_id': 4471, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u'@steelweaver, this is really interesting. Acupuncture has loong been considered alternative medicine. Lately it has become evidence based. Do you have objective evaluation of the effectiveness of your treatments?', u'entity_id': 19386, u'annotation_id': 4470, u'tag_id': 1946, u'entity_type': u'comment'}, {u'quote': u"1) Effective health care - I've lost count of the number of patients who have come in with stories of months or years of expensive National Health Service treatments that made no difference to their conditions, who then see a large reduction in their symptoms after only one or two acupuncture treatments. (Moves to provide acupuncture on the NHS over the last decades have been faltering and half-hearted, and are now suffering from a pushback against anything considered 'alternative' or 'optional' - which is a shame, as it could save the NHS millions).", u'entity_id': 671, u'annotation_id': 4469, u'tag_id': 1946, u'entity_type': u'post'}, {u'quote': u"However, more and more\xa0teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am\xa0surfing that wave, but STEM has become\xa0a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium\xa0are implementing\xa0smart boards, apps, school fablabs etc.\xa0without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc.\xa0rely on technology to avoid changing their behavior. Ironic, because reality is the opposite.\nWe do new biology education and that is\xa0our trojan horse:\xa0we can hide a new method in the new technological content that we bring. This also means that these changes to the methods\xa0won't be too radical. What we do\xa0is accepted as a technological innovation, but hopefully the changes in method will\xa0add\xa0to the slow collective learning process on different methods.", u'entity_id': 15297, u'annotation_id': 4659, u'tag_id': 45, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 4660, u'tag_id': 46, u'entity_type': u'post'}, {u'quote': u'By the way altruism is still there and it is main reason why the Syrians in Syria are still alive', u'entity_id': 797, u'annotation_id': 4663, u'tag_id': 47, u'entity_type': u'post'}, {u'quote': u'Idea of expectations from a particular context: only support certain things in certain circumstances. You only want to care about certain things at certain times so there is the question of:\n\n\nTiming\nContext when shared?', u'entity_id': 5405, u'annotation_id': 4662, u'tag_id': 47, u'entity_type': u'post'}, {u'quote': u'This skecth is from our\xa0brainstorm.\xa0\nWhat have been done?\nhttp://www.medicalert.org/product/catalog/medical-ids \nhttp://www.alz.org/core/alzheimers-dementia-wandering.asp \nhttp://www.alzheimers.net/2014-02-20/technology-changes-future-of-alzheimers/', u'entity_id': 777, u'annotation_id': 4665, u'tag_id': 48, u'entity_type': u'post'}, {u'quote': u'Amish communities,', u'entity_id': 22039, u'annotation_id': 4667, u'tag_id': 49, u'entity_type': u'comment'}, {u'quote': u'Very interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word "autonomy" in the sense of "a state of\xa0not\xa0having to be coupled with the world at large in a way we find troubling." Some people in Edgeryders uphold a similar concept, dependency reduction.', u'entity_id': 20474, u'annotation_id': 4666, u'tag_id': 49, u'entity_type': u'comment'}, {u'quote': u'Maybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.', u'entity_id': 30885, u'annotation_id': 4668, u'tag_id': 50, u'entity_type': u'comment'}, {u'quote': u'Spoken like a true hacker! Welcome, @thomasmboa, and thanks. This is one hell of a post. I am  intrigued that you view WHO-defined standards as "the capitalistic system": I think WHO would disagree, mostly in good faith, but I also think you are mostly right. Standards are classic (anti) competitive weapon \u2013 I wrote a paper about it myself, in a very different context, almost 20 years ago.', u'entity_id': 37488, u'annotation_id': 11804, u'tag_id': 53, u'entity_type': u'comment'}, {u'quote': u'@Alberto, thanks for the comments. \xa0While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health. \xa0At this point in NYC, there is still infrastructure for primary care and physical care within institutions. \xa0In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more "primary care" functions. \xa0But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health. \xa0In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here. \xa0We are thinking of treating acute mental health episodes, but to form the foundation for "preventative" communal mental health.', u'entity_id': 26065, u'annotation_id': 4675, u'tag_id': 53, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 4674, u'tag_id': 53, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 4669, u'tag_id': 51, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 4673, u'tag_id': 52, u'entity_type': u'post'}, {u'quote': u'Projects to make the sports clubs more inclusive because they were closed for refugees; also hardly accessible by children with special needs. So with other people they pushed for inclusivity and speaking to the Belgium Football Union, but also preparing a strategy for the next few years.', u'entity_id': 541, u'annotation_id': 4672, u'tag_id': 52, u'entity_type': u'post'}, {u'quote': u'The challenge: another way to make social work, so not only people that studied for the social sector. To take the social dream out of the social field and bring it to other fields. Because they are fed up of all the social help, they just want a happy life: it is not only important to have an home, but also to create great moments. To create equal relationships. break racism against the poor.', u'entity_id': 541, u'annotation_id': 4671, u'tag_id': 52, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 4670, u'tag_id': 52, u'entity_type': u'post'}, {u'quote': u'This skecth is from our\xa0brainstorm.', u'entity_id': 777, u'annotation_id': 4678, u'tag_id': 54, u'entity_type': u'post'}, {u'quote': u'I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the', u'entity_id': 16932, u'annotation_id': 4677, u'tag_id': 54, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 4676, u'tag_id': 54, u'entity_type': u'post'}, {u'quote': u"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles,\xa0even skill up in a process that difficult.\xa0\n\nThere are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder,\xa0said something similar about \xa0how conversation in which neither party is an expert can be lifechanging.\n\nI'm curious about\xa0the\xa0group which seems more or less open - can anyone who reports\xa0feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?", u'entity_id': 10263, u'annotation_id': 11924, u'tag_id': 55, u'entity_type': u'comment'}, {u'quote': u'One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment.', u'entity_id': 15782, u'annotation_id': 4681, u'tag_id': 55, u'entity_type': u'comment'}, {u'quote': u"This project was developed during Hacking Utopia - a three month course on product design for social and demographic change. The course format was developed by Prof. Susanne Stauch (@Susa) \xa0and Nadia EL-Imam (me) in a partnership between UDK (Berlin University of the Arts) and Edgeryders:\nThe Shit Show is an interactive pop-up exhibition designed to make the sensitive, 'taboo' issue of mental health more present and approachable to the public. Psychological struggles are still stigmatized, making it hard to reach out for help. We want to offer an alternative way for people to engage with the topic and develop mechanisms for support and resilience.\nMental illnesses are one of the most widespread disabilities worldwide. In Germany alone, 4 million people are affected by issues like anxiety or depression. Yet, it\u2019s a secret we all share. Seeking help for psychological struggles is still strongly associated with shame. Even being sad or stressed or unproductive is seen as personal weakness. As a result, many people find it difficult to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder.\nIt\u2019s easier to open up to someone who has similar problems and can empathize. But how to identify the people that can offer support when everyone tries to hide their struggles? Most people that are in emotional distress don\u2019t decide to seek help until they have been in increasing pain for a prolonged amount of time. Only about 35% of people suffering from depression are receiving treatment. On average, 11 months have passed before even these few seek out professional help. The Shit Show is one approach towards addressing this pressing situation.\nThe students : Omri Kaufmann, Pauline Schlautmann, Luisa Weyrich and Nele Groeger are in here so you can contact them directly) (@Omri_Kaufmann , @Pauline , @LuisaWey and @NeleG )...\xa0I know they're very passionate about the topic, and would love to bring this initiative to other Schools and Universities. They're even running a crowdfunding campaign to finance the costs involved. Perhaps there", u'entity_id': 26034, u'annotation_id': 4680, u'tag_id': 55, u'entity_type': u'comment'}, {u'quote': u'It.s a function of just what you say: isolation, feeling overwhelmed and especially embarassed. Subjecting oneself to embarrassment is not something today.s societies encourage.', u'entity_id': 14454, u'annotation_id': 4679, u'tag_id': 55, u'entity_type': u'comment'}, {u'quote': u'In effect after the Arab Spring Revolution (2011) everything changed. A lot of people that came from Horn of Africa or from other Sub Saharian regions and were in Libya for work decided to come in Europe. Gaddafi\u2019s death meant the end of every agreement \u201cPetrol vs Migrants\u201d that Italian Government had signed with Berlusconi in 2009 (for more details, this Guardian article). So you\u2019d have more asylum seekers in Europe, but also different routes, different countries of origin, different reasons to leave their countries.', u'entity_id': 515, u'annotation_id': 4682, u'tag_id': 57, u'entity_type': u'post'}, {u'quote': u'Carriers of narratives \u2013 Fiction of narratives, fables, archetypes or a story pattern (David and goliath, or the fool, the hero who goes on a quest). Look at propaganda in the LRA.', u'entity_id': 5405, u'annotation_id': 4683, u'tag_id': 58, u'entity_type': u'post'}, {u'quote': u"I'd like to propose\xa0a theme that I've been curious about for some time. How do we create the conditions for\xa0#opencare in our organisations and our communities? How do we design communities and organisations that are care-full, and promote health and flourishing? I'm curious about the interplay between policy and culture (as in ways of doing things rather than music and art). Are policies simply\xa0agreements about what we think works and what is right at any given time? Moreover how are they implemented at government or\xa0regional levels and in organisations, if they are to be more than good intentions? Do they end up needing enforced or policed by someone? Are they a tool of old ways of doing things built on hierarchy and power over? What role can they play in\xa0creating the conditions for\xa0opencare or for that matter for love and acceptance and generating\xa0the sense of coherence that Antonovsky describes in salutogenesis\xa0and its approach to study what creates health and well being rather than researching dis-ease?\n\nMy work through the GalGael Trust based in the Govan area of Glasgow has offered some hints that actively generating\xa0a healthy\xa0culture is perhaps more effective in achieving in an anchored way the 'good intentions' of policy. Strong values guide actions, decisions and\xa0behaviour, influence language and how we treat one another. Our workshop sees people working, for the most, part side by side. We\u2019ve had people with violent histories, people who suffer agoraphobia, depression and addiction. Yet something about the space we\u2019ve created has meant that people largely get on, there\u2019ve been no violent incidents in our 20 year history and people describe their doctor taking them off medication, sometimes for the first time in many\xa0years.\xa0\n\nIt\u2019s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we\u2019ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said \u2018the work is the therapy\u2019 - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society?\n\nWe\u2019ve recently spent a year curating a collaborative process to explore what it means to \u2018be GalGael\u2019. It saw us going back to our beginnings and drawing on the learning from our days as an anti-motorway protest camp. We wrestled with our assumptions - which were shared and which were disputed?\xa0We explored whether our purpose was actually underneath it all - to bring about greater love. This contributes to our being in a good place to\xa0explore this theme more widely in our own organisation\xa0and its practical application in more depth.\n\nThrough the process we would like to connect and learn from other organisations exploring this theme.\xa0\n\nWhat kind of structures and processes are essential building blocks or make up the \u2019hardware\u2019?\n\nWhat kind internal capacities and approaches make up the \u2018software\u2019 that keep a healthy organisation, healthy community or healthy societies humming with human flourishing?\n\nThe theme could also link to other themes that explore how we create the conditions such as:\n\n\ncitizens income and the politics of time;\nnature of collaboration and how we exercise our freedoms and capacities;\nthe nature of work in care-full societies;\nforms of leadership and personal capacity called for.\xa0\n\n\nI\u2019m very new to Edgeryders and I\u2019ve not had much time to develop this so would appreciate feedback and thoughts as to whether this might be a theme of interest to others.", u'entity_id': 6304, u'annotation_id': 11960, u'tag_id': 1958, u'entity_type': u'post'}, {u'quote': u'ehan Macleod proposes a session at OpenVillage to tackle an important question\xa0that goes beyond the field of preventative\xa0or wellness\xa0care by asking\xa0"how do we understand the architectures of love that are called for to create a more care-full society', u'entity_id': 6357, u'annotation_id': 4684, u'tag_id': 1958, u'entity_type': u'post'}, {u'quote': u"It's definitely worth reaching out to arts organisations to see how they respond to these types of ideas as well. I don't know about the mainland european models, but with the drastic reduction in state subsidy and the lack of increase in American style donor funding, UK based performing arts organisations have become much more interested in the ways they can repurpose buildings for theatre, creative industries and wider arts based practices.\n\nAn interesting case study would be Theatre Delicatessen in London:\n\n\n  \n    theatredelicatessen.co.uk\n  \n  \n    \n\nAbout - Theatre Delicatessen\n\nAbout - Theatre Delicatessen exists to support theatremakers and artists in the creation of their work.\n\n  \n  \n    \n    \n  \n  \n\n\n\nThey seem to only ever work in spaces that most others would move out of. Since they started they have had London bases in a disused factory in the West End (now a boutique hotel, i believe) then they moved into the recently abandoned Guardian newspaper head office, now they're moving across the river to an old Victorian library building.\n\nThey're less interested in what the space was before than what it can be in the future.", u'entity_id': 21005, u'annotation_id': 11961, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u'Alberto: artist, videographer; uses stories and video installations to make complicated i.e. environmental issues more accessible to the public', u'entity_id': 6372, u'annotation_id': 4705, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u"I was having another chat with a friend and colleague who is heavily involved in attempts to influence drug policy... in relation to the AOL theme, this is a case in point - as you may know - globally drug policy is dominated by a harm reduction approach that is founded on 2-3 experiments that drew conclusions about the addictive nature of heroin based on rats in cages - Bruce Alexander's work talks about a different approach - the globalisation of addiction based on a counter experiment nicknamed 'Rat Park' & there's a great graphic novel report of this - perhaps graphic novel format might be an alternative way to gather and diseminate insights?", u'entity_id': 23963, u'annotation_id': 4703, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u"I clicked on the Theater of the Oppressed link and saw the point about cultural humility!\n@Shajara \xa0Now that is a really a good idea!! \xa0\nDid you know 'modesty' is the 5th principal in the diybio code of ethics, btw?\nI am also interested in open poetry, spoken word, and think most problems can be solved if good communication is possible!", u'entity_id': 33812, u'annotation_id': 4702, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u'For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).', u'entity_id': 6315, u'annotation_id': 4701, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11777, u'annotation_id': 4700, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 4699, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'I am out of words to explain how amazing the idea is. Such creativeness! Each of the artwork is unique in their own way. Carrying hidden meanings and emotion. Treat to the eyes. Glad to know you came up with the idea. Wishing you good luck.', u'entity_id': 8438, u'annotation_id': 4698, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u"@Gentlewest hello and nice to meet you, I don't think I've met anyone from Cameroon until now. Small world, this Internet thing How do you see the change in behavior happening? Is anybody speaking publicly about this?\nOne example of intervention\xa0which you might find useful, although i don't know your background, is throuhg art. @Nabeel_p \xa0is working on awareness raising for public health issues and sets\xa0up large public art to get the message across. Some of us\xa0found it inspiring - have a look here? Nabeel do you see something like that tailored for reproductive health?\xa0\nAlso, guys: how much exposure of taboo is taboo?", u'entity_id': 8524, u'annotation_id': 4697, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u'On a lighter note...', u'entity_id': 13151, u'annotation_id': 4696, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 838, u'annotation_id': 4695, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.', u'entity_id': 828, u'annotation_id': 4694, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u"In 2014, I, Alberto Rey, had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800\u2019s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.\xa0 My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset while creating insafe health issues to underserved populations.\n It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth, a colleague at the State University of New York and a graphic designer, joined the venture early in 2016 and his work has been integral to the project\u2019s success. During Jason\u2019s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project\u2019s publications and the sales of my artwork.\n The Bagmati River Arts Project (http://www.bagmatiriverartproject.com/) includes exhibitions, lectures and a website that houses a project\xa0 overview, daily of blog of research in Kathmandu, sketchbooks, data, videos and links to the project's publication and documentary:\n \n  an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River and related health concerns in the area. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river.\n  \xa0a book ,Complexities of Water: Bagmati River, Nepal and Beyond, is a publication that will examine how the holiest river in Nepal became spoiled by decades of pollution and policies that did not address issues related to climate change. It\u2019s present condition is a result of is the result of government mismanagement and oversight, lack of concern for underrepresented communities who live along its banks, and extreme flooding and droughts due to climate change. Recent reports have ranked Nepal as one of the most vulnerable countries to climate change due to the high rate of urbanization, unchecked industrial development, severely low water supply, high pollution levels, increasingly frequent extreme floods and droughts, predictions of worsening conditions and lack of appropriate planning to mitigate or adapt to these conditions. Reports also list Nepal as an LDC (least developed country), which indicates its potential limitations to address these issues. This project hopes to bring international attention to this issue and hopefully some support to help provide finances to assist in addressing these issues.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 While examples of pollution and the effects of climate change can be found throughout Nepal, there is no better example of how bad the situation has become than what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river\u2019s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu\u2019s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/).\n  a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/).\n  a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster.\n \n All elements of the project listed above were finished and presented at the opening of the exhibition on November 20, 2016 at the Siddhartha Gallery in Kathmandu, Nepal.\n An exciting extension to this project is to have the artwork, publication, documentary, brochures and posters tour the United States and internationally. The Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition.Water issues are a worldwide concern and the Bagmati\u2019s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.\n \xa0\n For more information please contact alberto@albertorey.com.\n \xa0\n \n \xa0\n Project Leaders\n Alberto Rey \u2013 Distinguished Professor in the Department of Visual Arts and New Media at the State University of New York at Fredonia and for the past 18 years has been the Director and Founder of Children in the Stream Youth Fly fishing Program (https://albertorey.com/s-a-r-e-p-youth-fly-fishing-program/). He is also an Orvis endorsed fly fishing guide and is an environmental activist. (https://albertorey.com/)\n Jason Dilworth \u2013 Assistant Professor in the Department of Visual Arts and New Media at the State University of New York at Fredonia and founder and director of several social design projects.\n  More information available at:\xa0www.projectmlab.com/Jason-Dilworth and\xa0www.designersandforests.us\n \n Past, Present and Future\n For the past decade, I have been working on site-specific installations that examine the local bodies of water near the exhibition venues and their relationships to enviornmental and health issues. When the regional investigations are included with other investigations from regions around the country and the world, the audience can make connections between their local region and other parts of the world. These installations are complex, ambitious, and include informational publications and with extensive text panels that outline the issues related to the bodies of water. The panels and publications include maps of the bodies of waters being investigated; water samples with scientific data outlining their chemical breakdown and pollutants; and images, graphs and videos from the data collection sites.\n We have recently partnered with the United States Forest Service and will begin the process of documenting the stories that outline the importance of clean accessible water in communties and the organizations that are helping communties by protecting this valuable resource.", u'entity_id': 576, u'annotation_id': 4693, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u"Similar to @Alberto, \xa0I'm curious your experience\xa0with this so far. Spoken-word is a passion for me and I've definitely seen the power it has to give an outlet for\xa0people's voices.\xa0\n\nI also wonder if you have looked into any other creative mediums for creating common ground? One thing I am looking into in this realm is Theater of The Oppressed. Maybe this upcoming webinar would be of interest to you?", u'entity_id': 33802, u'annotation_id': 4692, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums.\nWhithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.", u'entity_id': 33752, u'annotation_id': 4691, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'I agree that visual approaches bridge educational divides and somewhat diffuses jargon. This has assisted me in relaying scientific knowledge to other audiences. I\'ve been actively involved in collaboratively designing Events to this purpose, which not only provides knowledge in "digestable" means to community members, but are key for Scientists to observe as well. Each event has been learning for me, and I\'m now testing the efficacy of presenting data in a different manner in communities, i.e. arts, or fun interactive events within communities in a pop-up fashion.', u'entity_id': 33824, u'annotation_id': 4690, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u"And finally @WinniePoncelet, as these methods are very new and often hard to track scientifically I've chosen to look at impact and direct KAP (knowledge, attitude and practice) changes. This is a near impossibility in its own. The way I've sought to study the efficacy of drama as a method was to\xa0study variations of drama presentation including: deep characterization of characters; involving comedy in messages; shorter repetitive chanting or messaging in plays; plays in controlled environments to an invited, anticipating audience; pop up plays in local clinics to unsuspecting audiences. We interviewed persons with a set of questions focused on specific health messaging (i.e. TB and HIV focused) before and after plays.", u'entity_id': 33803, u'annotation_id': 4689, u'tag_id': 61, u'entity_type': u'comment'}, {u'quote': u'My name is Nabeel Petersen, a South African citizen on a mission to design and test novel methods for Science Communication, Research and to foster collaboration and stimulate dialogue. I have been employed in the non profit sector as a Project Manager on various projects, after having explored and tested theatrical/drama techniques and incorporating that into Science Communication and Health Messaging. And let me tell you, I am completely motivated and inspired by this community and others toward this goal and Public Engagement.\nMy experience as a process facilitator includes various participatory methods including: photovoice, drama, collaborative/participatory video, workshop design and events design. I\'ve resigned from my formal job in order to test additional methods which I believe have the power to stimulate dialogue, forge relationships across difference sectors and reach larger audiences in organic, fun and interactive means.\nSince resigning from my formal employment, I\'ve begun developing concepts using Street Arts and collaborations to install live arts installations driven toward Public Engagement. Now, Public Engagement as a term itself is not void of ambiguity and misuse for the purpose of funding or green-stamping our professional works. This isn\'t anyone\'s fault as it\'s a field that is developing. We should strive for full participation in our works, not merely using the term as a stamp of approval. My project aims to forge relationships with very different bodies of knowledge and social status, i.e. biomedical professionals/scientists, community members and artists, all of whom I argue have equally important and necessary knowledge to combat illness, increase the status of general Public Health and, simply put, fight a battle using a full arsenal of knowledge and weapons.\xa0\n\nAllow me to rewind, ever so slightly to paint a picture. I\'ve previously sought to test photovoice as a participatory method by forging relationships with community members from an under-resourced community in Cape Town, South Africa, and Scientists from the University of the Western Cape. The project sought to bring these varied parties together in a participatory workshop process, after which community members were trained on DSLR cameras and instructed to capture the lived experience of food in their everyday lives. They could capture anything related but not limited to\xa0the purchase, consumption or disposal of food. This project revolved around Cardiovascular disease and the Scientists involved were Seniors at the Cardiovascular Research Unit at the University of Stellenbosch. The array of visual material and accompanying narrative was phenomenal and utterly beautiful. It shed light on the constant negotiation of food and consumption in these communities, including the availability of food, what kind of food was deemed healthy or not, when it was suitable for food to be disposed, food as celebration and community building etc. To me, and the Scientists involved, this process unveiled knowledge on food consumption behaviour and more structural issues imposed on these communities. It was never simply a "I want KFC and I shall buy KFC". This food choice is always compounded by budget, compromise, available options, time of the month, etc. People are consciously and constantly negotiating and re-negotiating choices. My heart broke when a Senior member of the project sample pulled me aside mid-project and told me ...\n"Nabeel, I\'ve suffered from Type 2 Diabetes for 15 years. At least thats what the doctors told me. They gave me medication and send me away each month. But never before has anyone told me what Diabetes is in a way that I understand. Never before have they taken time to talk with me. But now I have these scientists in my backyard. And they can\'t leave until I know my body"...\nIt\'s necessary to point out that even though this community has an approximate population of 100 000 it only has one superstore that either of us would immediately turn our back on. Most food products are sourced from small kiosks on the corners. Yes, I am still in shock. How and why are the most vulnerable excluded from knowledge and provision of services? An alarm bell rang in my head that I could not ignore since I resigned. We\'ve been running projects with a very specific agenda which more often than not in the non-profit sector provides an income and life for the administering organization. The sad truth is peoples knowledge are not given the kudos and respect it desperately needs. And in this battle, that may just be our most prize weapon.\xa0\nFastforward 8 months and I\'ve developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory,\xa0collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.\nNow. Back to my current project...\xa0\nI have recently collaborated with the University of Cape Town\'s Swallowing the World project which is a curatorial project focused on the lived experience of TB. My team of graffiti artists and I joined the festival, set up 2.5 x 2.5m canvas in the middle of campus and contributed to this project on International TB Day. As the focus of the fest was on Destigmatization, we followed suit and allowed interaction between the audience and ourselves to influence or define the artpiece. A\xa0short video of our work:\n\n\n\n\xa0\nThis project will be installed in South Africa, India and Botswana simultaneously and attempts to use culturally- and community-sensitve street art forms. As such, we are holding participatory principles as central to the success of the project as we would like to design the project trajectory, outcomes and art installations/events with all participants. You may be thinking that no Funder finds this ideal. Alas, we\'re all wrong. We have had alot of interaction with a potential funder who chose to view the testing phase on UCT in livetime. This live time viewing feature of our project is something we would want to function very much like Edgeryders as it allows for collaborations and creativity between individuals and entities that may not traditionally interact.\xa0\nThis leaves me at your feet as I\'d love feedback, interaction and potentially consider collaborations with not only this project but others moving forward. I\'d love to work in varying contexts and establish relationships between and across scientists, community members and artists from varying countries. This will be my next step. Apart from the actual arts installations and events, as products, we will be developing a best practices publication focused on the entire project in each 3 countries. I will also carry my "researcher" hat for the duration of this project as I wish to study: the interaction;\xa0immediate knowledge transfer between scientists, community members and artists; retained knowledge and overall impact. I would openly accept any suggestions or feedback...\xa0\nFor now I continue on my mission to test community- sensitive and -relevant means of expression and trying to find ways of using those tried and tested methods as communication tools. After all, what we want are healthier , expressive and inclusive communities whether you choose to define that territorially or otherwise. Only together can we progress...', u'entity_id': 33730, u'annotation_id': 4688, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'In this framework, we organize a unique Creative Centre for our children which we called BIG BANG after SCHOOL\u2019. This is a comprehensive program for elementary school children and kindergarten, where all participants are able to connect with music, cinema, dance, theater, arts as well as workshops in creative thinking, constructions, architecture and engineering. Additionally, we created a specific program for elementary courses such as science, history, philosophy and multilingualism. In this project, everyone is welcome to contribute in different ways besides financial support. This is a project designed to benefit children and parents who seek for alternative educational methods of learning and interacting with people and the natural environment.', u'entity_id': 761, u'annotation_id': 4687, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 4686, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'The Canaries, from Nyc, thinking outside of medical crises. Using arts as a place to reimagine infrastructures of care and psychosomatic healing.', u'entity_id': 38787, u'annotation_id': 11887, u'tag_id': 61, u'entity_type': u'post'}, {u'quote': u'Based in the heart of Sheffield, Access Space is the UK\u2019s longest-running free internet learning centre, with thousands of participants making use of it every year \u2013 and it has achieved this without spending a penny on computers or software. Its model has inspired centres across Europe, while MetaReciclagem \u2013 a Brazilian initiative directly informed by Access Space \u2013 has now grown to a network of almost a hundred centres.\n\nI founded Access Space in 2000 - but I had the idea in 1996 - when I started an arts project called "Redundant Technology Initiative". I\'m an artist, and I wanted to use my art practice to show the true situation in Sheffield, the city where I live. Sheffield has suffered structural problems from massive industrial change - the city used to be based on Coal mining and the Steel industry. Now the coal mines are closed, and the Steel mills are manned by robots. There is a very high level of unemployment in the city, and much of the employment that there is is in the public sector - most adults work for the government!\n\nWorking as an artist, I saw that the city was failing to adapt to the emerging information economy - South Yorkshire had the lowest uptake of information technology in the UK. Meanwhile, I was making art from trash that I found in skips. Not only was the trash free (yes!) it seemed to me to be the most suitable material with which to make art about urban decline.\n\nThen I started to find computers in the trash. I collected them, with the idea that I would make robot sculptures and other crazy artworks. I was amazed to discover, after some experimentation, that most of the PCs I recovered actually worked! I started to think about why people were throwing these machines away - when the city had a low level of engagement with information technology.\n\nSo I started an arts group, "Redundant Technology Initiative" with one rule - we would be the people who would be creative with trash computers. But ONLY trash computers! We would refuse to pay for any technology, and only use what we could get for free. (This was lucky, because me and my friends were unemployed or unpaid artists, and thus completely skint.) We had a few exhibitions, and each time we exhibited, people brought us more computers. Being artists, we made them into "an art installation". (Other people might think, with some justification, that what we had made was was just "a huge pile".)\n\nBy 1998 we had rented a warehouse which was scheduled for demolition. One good feature of industrial decline is that space is cheap. We had more than 1000 computers (!!!) some of which worked, some of which could work, and some of which were broken. We made a HUGE installation for a digital arts festival... and then more and more people gave us computers. After a few weeks we had more than 2000 machines.\n\nWe started to realise two things:\n\n(1) We didn\'t have any shortage of computers.\n\n(2) We did have a shortage of skill, expertise and creativity.\n\nWe learned how to rebuild and reprogram computers really fast, and we found students who also wanted to help. A local college sent us their trainees on "work placement" - and they learned as they helped us to repair the massive numbers of machines. But we then had a very embarrassing problem for an art group. We just weren\'t creative enough. We couldn\'t think of cool things to do with more than about 100 computers - we needed to think of cool things to do with 100 computers PER MONTH.\n\nSo we designed "Access Space" - a digital lab where people can walk in and show us how they could be creative and productive with trash technology. It took 2 years to raise enugh money to start, and after we started, we managed to get ERDF funding to match our initial funds. (NOTE that there was no way we could have accessed ERDF funding with our levels of experience. We came in as a minor delivery partner, insulated from the frightening bureaucracy of the project by more experienced lead partners. This was very lucky for us - and could start a whole new conversation.)\n\nSo, in 2000 Access Space opened. We believed it would be a good model to help people get engaged with technology. We invite every visitor to define their OWN objectives with trash technology - it could be making images, sounds, music, robots, websites, designs, photo galleries... It could be building a business, making new networks, rebuilding computers, or whatever. Our key test is that people THEMSELVES set their agenda. We don\'t work with a curriculum. And we don\'t have teachers. Instead, we ask participants to help each other - and because they\'re all working on "cool stuff" not "boring stuff" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience.\n\nWe provide a free, open access digital lab, doing all sorts of things, from computer analysis, repair and recycling to art exhibitions, workshops, peer-learning activities, enterprise incubation, social support and more. We set up this lab as a response to unemployment, urban decline and the transformation of the job market. What we\'ve established is an innovative methodology to invest time, not money, in ICTs. This has huge potential to address worklessness and lack of opportunities. It\'s worth reflecting that many of our participants in Access Space experience the kind of precarity which you are investigating with Edgeryders.\n\nAccess Space has a very wide range of participation.\n\n\nIf you split them into three groups, <25years, 25-50years, >50 years, then those groups are roughly similar in size.\nRoughly 1/3 of our participants are from minority ethnic backgrounds.\nAround 1/3 of our participants have a university education.\nAlmost 2/3 of our participants are unemployed, or under-employed.\nAround 1/5 of our participants have some form of disability or long-term illness - particularly learning difficulties, like Asperger\'s Syndrome (associated with high intelligence) and mental health difficulties, such as depression.\n1/10 of our participants have a serious problem with housing. Either they\'re homeless, or they are living in insecure, or temporary accommodation.\n\n\nWe had more than 2000 people use the space in 2011, which added up to more than 12000 hours of usage. Helping and facilitating this number of people, particularly when some of them have difficulties, is a huge job.\n\nWhen it comes to funding, the significance of Access Space\'s budget is how small it is for the outcomes it delivers. Access Space principally sustains itself by saving money. A typical annual budget is only around \xa3100K. We have survived by raising funds, and by saving money. We save around \xa330000 each year by only using recycled computers and free, open source software. We have a very small core team (now usually 6, now 7 people, mostly part-time) who are on short-term contracts.\n\nOur special power with funding is the huge range of benefits that Access Space brings. We help people:\n\n\nMake creative progress - by engaging with digital creativity.\nMake technical progress - learning new high-tech skills.\nMake social progress - by helping each other, and by working together, people learn crucial soft skills, and develop more useful networks.\nMake progress with employability and enterprise. (These we see as the ultimate extension of all the types of progress people make.)\n\n\nThis means that we have a wide range of stakeholders. We have been funded to:\n\n\nIncrease high-tech skills for local enterprises.\nGet people involved with the digital arts.\nHelp people become "digitally included".\nResearch and test new models for peer learning.\nDevelop and incubate micro-enterprises.\nDevelop high-tech skills with innovation potential.\nHelp people to become included in mainstream society, and become more employable.\n\n\nWhat do we want? Funding, of course! However, we are aware that models based on funding are becoming increasingly under pressure. So we have started a "Friends" scheme, to ask our participants, and anyone else who thinks that the free opportunities we deliver are a good thing, to contribute.\n\nBut we also need more participation by people who understand the challenge, and want to help. We want people who are interested to help us facilitate the community, build functioning social and economic networks, and experiment with how we can mobilise the talents and skills of the larger and larger number of unemployed people we encounter.\n\nWe realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative.\n\nWe need:\n\n\nMore volunteers who are interested to work with a wide range of people, and are interested to challenge social exclusion and division.\nEnterprising people who are interested in starting their own business and can see the potential to work in a social, creative and technical context.\nOpen source software enthusiasts who want to help us spread the word. We have a number of specific software and hardware challenges which we could use help with.\nOther spaces across Europe who would like to collaborate with us to develop a network of social, technical and creative spaces. We have contacts already, but many spaces are just "technical and social" or "creative and technical" or "social and creative". We are looking for groups that want to be "technical, social, AND creative".\n\n\nThis would be the gist of what we\'re doing with this project. If you are passionate about techs and open source software, let me know and maybe we can collaborate. Also, if your\'re around Sheffield and would like to visit our establishment, also drop a line; We\'re currently working with x volunteers, but would be happy to take you in if you\'re up for this!\xa0\n\nFind us at:\n\n\n  \n    access-space.org\n  \n  \n    \n\nAccess Space\n\nMaking and Unmaking\n\n  \n  \n    \n    \n  \n  \n\n\n\nhttp://www.facebook.com/accessspace\n\nhttp://twitter.com/AccessSpace\n\nFinally, to see our work in action, I leave you in the company of this video of the Recycle Mid-Weekend we organized in March last year:', u'entity_id': 1710, u'annotation_id': 11962, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u"a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/).\n  a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster.", u'entity_id': 576, u'annotation_id': 4737, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 4735, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u'participants. Outcomes from preMon include a collaboration between Cos\xe1in and Pais\xfain F\xe1isuin, where they ran an event and raised \u20ac1440.\xa0 And Cos\xe1in doing an art therapy retreat in 2 weeks with Alan, our host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources.', u'entity_id': 14308, u'annotation_id': 4734, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u"And @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I'm following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it's carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let's be realistic for the near term", u'entity_id': 10812, u'annotation_id': 4733, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'B. a book is being published (available in November 2016) that documents the importance of the Bagmati River, the cause for the pollution, climate change effects on the Kathmandu Valley and its groundwater, and plans to improve the condition of the river. The role of this publication, like the exhibition, is to use aesthetics as a way to make the scientific data accessible to a wider audience. Artists from the United States and Nepal will be included in the publication. The publication will be made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on this website.\nC. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website.\nD. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design.\nAll elements of the project listed above will be finished and presented at the opening of the exhibition in November 20, 2016 when Jason and I plan to return to Kathmandu.\nAn exciting extension to this project is the plan to ship the artwork, publication, documentary, brochures and posters back to the United States where it will tour around the country and, possibly, internationally. Water issues are a worldwide concern and the Bagmati\u2019s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.\xa0\xa0\nThe Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition.\nFor more information please contact alberto@albertorey.com.', u'entity_id': 752, u'annotation_id': 4732, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u'I\xa0feel the\xa0need for strange networks of care:\xa0unusual, compelling networks that don\u2019t attempt to fix anyone but make healing and self-understanding an adventure and help individuals back into the simple joys of communion and creativity. To\xa0explore\xa0group dynamics and coherence in\xa0recent projects I\u2019ve been involved in, I\'ve worked with beans http://www.rootbeans.com/, with dreams (following the method of my mentor Apela Colorado) http://oneiricarchives.tumblr.com/\xa0and with storytelling http://www.thehaguecenter.org/pathways-project-2/. \xa0Back up in Liverpool we\'re improvising on Stafford Beer\'s work on group dynamics in public meetings. Whether it\u2019s VR group therapy where you experience your own body and other people in highly unusual ways or group Skype rituals for reconciliation the whole notion of care networks is wide open for innovation and renewal.\xa0As a guiding design point I think the only answer to questions like how can ritual time be held online or how can digital networks provide the intensity of feedback of live interaction is bold creativity. If you have examples of\xa0creative online\xa0systems to faciliate group communication and support\xa0that go beyond a\xa0message board or online forum and become something more vital and "live" please share them.\xa0 I\u2019ll be at 33C3 if there\u2019s people from the Edgeryders community who want to meet around the\xa0theme of hacking\xa0strange networks of care. There\u2019s also an option to organise a session: https://events.ccc.de/congress/2016/wiki/Static:Self-organized_Sessions', u'entity_id': 553, u'annotation_id': 4729, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u"I am very moved by your story and I like the idea of including 'a wish' in every backpack so much. It reminds me of this project: https://www.facebook.com/weshallstandforlove/ of a fiend or me in Brussel: Dorothy Oger wrote the poem We shall stand for love in the aftermath of the Brussels terror attacks, and then the poem went viral and was translated in many many languages and now it is distributed for free on postcards with enough space to add a personal message;", u'entity_id': 20831, u'annotation_id': 4728, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'But to conclude, I\u2019d say that once clarified what aspects you guys are more interested in working with, there would be specific/ specialized ways to enable care and help. It might be that it is not even relevant if the creative field is more prone to anxiety than others, but wanting to reduce these big emotional costs would require a particular approach, one that suits the idiosyncrasies of the field. I\u2019d be very interested to contribute within my own area of knowledge and experience -\xa0I say there\u2019s a strong need for open care structures here.', u'entity_id': 32092, u'annotation_id': 4726, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u"In my vision many artists are trying to 'heal' themselves through their art - redefine themselves, trying to find a way to become 'whole' again - integrate pain and trauma. Artists are often 'self-healers', they are their own therapists.", u'entity_id': 31148, u'annotation_id': 4725, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'do artistic collectives or platforms have a contribution to make here or rather more diverse social environments?', u'entity_id': 30885, u'annotation_id': 4724, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u"HI\xa0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!", u'entity_id': 30608, u'annotation_id': 4723, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'Certainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice.', u'entity_id': 29955, u'annotation_id': 4722, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'Have you looked into art therapy or therapeutic gardening?\xa0Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and\xa0"an old soul" (we like to joke :))\xa0might be able\xa0to offer more\xa0advice. Hang in there.', u'entity_id': 21301, u'annotation_id': 4721, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u"There is certainly a strong link through poetry and literature to this idea. I've recently been reading a lot of Thomas Mann and it's almost the entire structure on which his work is predicated. There seems to have been a sensibility that was propagrated in the late 1800s -early 1900s European intellectual/artisan culture around 'bohemianism' or latterly 'bourgouise'. I think in some senses it emerges out of a combination of Romanticism (in poetry and visual art) and it's opposite reaction,\xa0Realism (in painting and literature) and the beginnings of the sentimental nostalagia-tinged\xa0classical music of people like\xa0Verdi and the German/Austrians like Liszt, Mendelsohn.\xa0\nThe 'struggling artist' becomes a trope, a series of hooks onto which musicians, writers and painters can hang their emotional responses to the world. The struggles of the artist can therefore\xa0be equated to the struggles of the working, pastoral man and woman, who often during this period are the themes on which the artist work. c.f Beethoven's 6th, Robert\xa0Burn's Poetry, Victor Hugo. Which becomes an important connection between the (usually rich, educated and entitled) artists and the philosophy of people like Rosseau and Locke who want to improve the human condition for all.\xa0\nMore of a History of Art and Ideas response to the idea, and certainly not my final views on the subject, but i thought i'd add a bit more to this already in-depth post.", u'entity_id': 13417, u'annotation_id': 4720, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'However, as most people that work in a creative field would probably tell you, it really is stressful. Being creative is intense.', u'entity_id': 680, u'annotation_id': 4719, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u'So many fiction-like\xa0cultural references come to mind Really inspiring, and from reallife examples it\xa0reminds\xa0of the Brazilian Wasteland and how wasted\xa0human potential can be turned into art.', u'entity_id': 9449, u'annotation_id': 4718, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 4717, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u'This is what I like about the art that takes the shape of "pile of stuff" etc.: it makes people think, provokes them, calls them to action, like to add another computer as they did. And finally something very useful can emerge from all this that is ahead if its time: hackerspaces and fab labs weren\'t much around in 2000 when you founded Access Space, were they. The arts people found a way to start such a project even when the idea wasn\'t ripe for "regular", business and technical type innovation. Thanks, folks!', u'entity_id': 19954, u'annotation_id': 4716, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'Working as an artist, I saw that the city was failing to adapt to the emerging information economy', u'entity_id': 6759, u'annotation_id': 4715, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'I founded Access Space in 2000 - but I had the idea in 1996 - when I started an arts project called "Redundant Technology Initiative". I\'m an artist, and I wanted to use my art practice to show the true situation in Sheffield, the city where I live. Sheffield has suffered structural problems from massive industrial change - the city used to be based on Coal mining and the Steel industry. Now the coal mines are closed, and the Steel mills are manned by robots. There is a very high level of unemployment in the city, and much of the employment that there is is in the public sector - most adults work for the government!', u'entity_id': 1710, u'annotation_id': 4714, u'tag_id': 1960, u'entity_type': u'post'}, {u'quote': u"I was recently in contact with a Belgian researcher working on stigma of TB and HIV/AIDS community health workers. As you see behind the links, she made two\xa0mini documentaries about people involved in those communities. She's now planning to make another round of videos/photographs.\xa0I find it a great way to communicate science and to highlight the community aspect.", u'entity_id': 33787, u'annotation_id': 4736, u'tag_id': 1960, u'entity_type': u'comment'}, {u'quote': u'I have some questions but I will try to first off reply to Alberto by interpreting the text above: to my understanding the idea behind the digital service is one where in a first phase the experience is initially one-to-many and the users are receiving feedback,\xa0but what they are actually mostly doing is feeding some kind of artificial intelligence that will generate the knowledge about the specific intolerance. the many-to-many kind of interactions will come at later stage as a consequence of the first phase.', u'entity_id': 15751, u'annotation_id': 4740, u'tag_id': 2342, u'entity_type': u'comment'}, {u'quote': u'And finally, the fourth pillar of our work is the Artificial Intelligence business. One of the outcomes of our work is NewSum that produces automated news summaries, and works in many languages. Or PServer application, that helps you personalise other applications.', u'entity_id': 528, u'annotation_id': 4739, u'tag_id': 2342, u'entity_type': u'post'}, {u'quote': u'http://www.theverge.com/a/luka-artificial-intelligence-memorial-roman-mazurenko-bot', u'entity_id': 15488, u'annotation_id': 4738, u'tag_id': 2342, u'entity_type': u'comment'}, {u'quote': u'.do you think you could get\xa0permission?\xa0\nAnother think that you might consider was\xa0pointed out by Alex (volunteer\xa0in Calais/ Dunkirk camps)\xa0in a response to Milan\'s similar efforts: "My suggestion is first\xa0to ask them how you can help, rather than guessing. We talk to community leaders on the camp every 2 weeks and ask for suggestions so we can improve our processes" \xa0That conversation is here,\xa0should you wish to exchange ideas.\nVery excited to see you guys doing so much practical research, keep it up!', u'entity_id': 9576, u'annotation_id': 4741, u'tag_id': 64, u'entity_type': u'comment'}, {u'quote': u"@Aravella_Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal.\xa0I wonder:\xa0with so many diverse community efforts,\xa0haven't there been any events\xa0where active\xa0people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?", u'entity_id': 14969, u'annotation_id': 13126, u'tag_id': 65, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7855, u'annotation_id': 4744, u'tag_id': 65, u'entity_type': u'comment'}, {u'quote': u'MBC: \u201cI don\u2019t like this kind of assistive technology much\u2026 you never know it will let you down. So many factors: the signal may be lost, the battery may go down, the app could crash\u2026 what should I do then?\u201d', u'entity_id': 577, u'annotation_id': 4748, u'tag_id': 67, u'entity_type': u'post'}, {u'quote': u'The involvement of Federico Bortot- @Frankie_Bortot - an engineer interested in 3D printing and open assistive technologies could bring in useful skills. The discussion grew as the project about how research could benefit from such breakthrough experiences, especially in the field of assistive technologies and scalable manufacturing. Enrico from WeMake has brought support and enthusiasm in printing assistive prototypes like the one you see in the above picture.\nNow, we are collaborating online (Google Calendar and Google Docs mostly) and offline, meeting quite often at WeMake to design and deliver a local project with common goals....more to come', u'entity_id': 862, u'annotation_id': 4747, u'tag_id': 67, u'entity_type': u'post'}, {u'quote': u'I have been active in the field for 20 years working at major rehabilitation institutions, but I\u2019ve only rarely seen patients being offered these assistive technologies and more rarely seen them \xa0used outside the hospital. Is the problem (as some people with SCI have entrusted me) that there is no such demand or \u2018new hope\u2019 for walking? After all, wheels are more efficient than legs - provided accessibility!!!', u'entity_id': 516, u'annotation_id': 4746, u'tag_id': 67, u'entity_type': u'post'}, {u'quote': u"Demonstration of an OpenCare model of a \u2018makerspace\u2019, We propose a laboratory where people living with motor impairment due to e.g. multiple sclerosis (MS), stroke or spinal cord injury (SCI) can meet and collaborate with other people. There will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices. A cooperative model where citizens with various skills can work together on realizing devices for use in everyday life, that will improve or maintain individual functional capabilities. This model will explore ways to transfer research results directly to users (target participants). New and existing ideas will be challenged and transformed into methods and assistive technology for activities of daily living. Initial focus will be to demonstrate how the challenges of mobility can be resolved by helping people's creativity in a social environment. One challenges that people often meet is the need for adaptation of tools to be able to perform day-to-day tasks as .abilities change, In the WeHandU laboratory people will be able (and helped) to implement such changes.", u'entity_id': 720, u'annotation_id': 4745, u'tag_id': 67, u'entity_type': u'post'}, {u'quote': u'I\'m Narindra Michel RAKOTOARISOA, I was born near of tropical forest in east of Madagascar, near by raining forest. I have an chronic asthma since when I was 2 due to a medical poisoning. My parents were there to make me extract some of it out of throat. Few days since those\xa0moments, when weather will have changing,\xa0I\'m cough early 12 hours before its changing, a kind of meteorological detector  More than that, there were 9 people\xa0leaving in a small house of 10m2.\xa0Majority of Malagasy people we use charcoal as combustion for cooking like us. So it was more and less enough ventilated for all of us. During my childhood I was suffering of heavy breathing and lungs whistling, the fact that I lived next to a forest having\xa0fresh air and help me to overcome this asthma until my adult life. I didn\'t know too much people who suffer with the same illness like mine until now...\n\nMore than the half of the forest in my country has been cutted for combustion, furnitures, slash and burn,... Following population growth from 15 million to 20 during the last 30 years. Public health and sanitation are trying as they can and have to keep us healthy; with this growing population; open fire and carbonic gas are growing following this,\xa0carbonic gas from factories and cars... Nowadays, 80% of kids under 5 years\xa0seem\xa0asthmatic. I know that when I was asking the pediatrician in a pediatric hospital, where I brought my 3 years old nephew for lungs exam. For information, only few people who have enough money can afford treatment like aerosol "inhale", medicines,...\xa0\n\nRich and powerful people control the destiny and future of my country.\n\nFollowing this the Malagasy government has decided to stop using plastic bags last December without alternative until now. This is a good idea but the bad effect is some of our "ravinala" considered queen and symbolic tree of Madagascar is taking place of the plastic bags ; I heard a rumor that some people on our government brought back "biodegradable " plastic bag made with cassava, It\'s a kind of bag thick than one before. Without label or information about the factory whose made it, probably from one powerful people on the government.\xa0\n\nOther than that, without mentioning the massive destruction of large area of primary forest caused by a multinational firm mine project since 2003.\n\nActually it\'s our future generations lives is on the line metaphorically and literally. Nature and man can\'t be separated.\n\nAs my thoughts, training for peasants for new method of rice planting unsteady of slash and burn. Biogas can replace the charcoal and wood used as \xa0combustion of 80% of Malagasy people. \xa0Education for all and ordinance and penalties can be applied for any means of illegal way. \xa0It\'s just a small sand into the gears to overcome or slow\xa0down this fast truck.\n\nMichel RAKOTOARISOA', u'entity_id': 706, u'annotation_id': 13127, u'tag_id': 2253, u'entity_type': u'post'}, {u'quote': u"The work I'm involved in\xa0at GalGael came out of fires protesting motorways bringing asthma and nature deprivation to communities in Glasgow already hard pressed. We created relative safety admist a housing scheme where there was little.\xa0We learnt along the way - by accident - the sense of agency that comes from \u2018the act of sharing responsibilities\u2019 within the context of the encampment. We chose to continue to work with that sense of agency and still do so 20 years after the motorway was built. We\u2019ve continued learning and particularly the extent to which that sense of agency is profoundly connected to our health. We\u2019re lucky in Scotland to have had a recent Government Chief Medical Officer who underlined the importance of work on salutogenesis - the importance of studying what makes us healthy rather than disease itself - and the role that our sense of control over our own lives plays in our health; both physical and mental. (Harry Burns - I believe he is regularly in NY)", u'entity_id': 13972, u'annotation_id': 4750, u'tag_id': 2253, u'entity_type': u'comment'}, {u'quote': u'Hello @Michel , thanks for this great story (and thanks for taking the time of writing in English, unfortunately most people in Edgeryders do not speak or read\xa0Malagasy). Wow, I had no idea asthma was that common in your part of the world.\xa0\nI am wondering if asthma treatment would lend itself to cheap, open source, DIY treatment.\n\nit is a chronic condition \u2013 plenty of time for the patient to learn to manage it\nit is treated with well-understood drugs\xa0\nwhich are delivered with relatively simple machines (inhalers)\nlifestyle and environmental modificiations also affect it \u2013 as Michel says, defend the forest, asthma management gets better for everyone living near it.\n\nThis sounds like something communities could try to crack.\xa0Does this make sense, @markomanka and @Costantino ? Would this be a possible area to work in?', u'entity_id': 14837, u'annotation_id': 4749, u'tag_id': 2253, u'entity_type': u'comment'}, {u'quote': u'A little bit about my experience: In particular I would like to speak about my working period during the so called \u201cNorth \xa0Africa Emergency\u201d for 3 years. It was a really hard situation for our (Italian) reception system. We were in the paradoxical situation to tell them: \u201cyou are an asylum seeker, you HAVE to be an asylum seeker, if you want to have any chances to stay in Europe\u201d.', u'entity_id': 515, u'annotation_id': 4751, u'tag_id': 69, u'entity_type': u'post'}, {u'quote': u'asylum', u'entity_id': 39328, u'annotation_id': 11613, u'tag_id': 69, u'entity_type': u'post'}, {u'quote': u'atomized', u'entity_id': 521, u'annotation_id': 4752, u'tag_id': 70, u'entity_type': u'post'}, {u'quote': u'Hey dear fellow edgeryders!\nHow can we create the most amazing world by being all of ourselves? How can we explore more of our loving and creative potential as well as create a world that reflects this inner beauty and love?\xa0\nThese are two vital questions for me and why I\'m\xa0"Creating new realities". There\'s this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts\' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that\'s feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.\xa0\nTo me there\'s roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what\'s happening, even when I don\'t know where I\'m going. I\'m fully aware of what I\'m experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it\'s also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.\xa0\nSo can we\xa0do that?\nCreate new realities and find deeper love within and for each other? Can we create and hold space? Can we set up a world that\'s a reflection of the love and creative potential? Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that\'s natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn\'t serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic?\n\nOver the last years I\'ve been organizing several series of meetings about personal transformation and\xa0living from the heart\xa0(for instance;\xa0Vrij met Geld/ Free with Money). Also I\'ve worked and lived with changemakers communities, for instance at the Synergyhub in Rotterdam and several ecovillages/ ecocenter\'s, as well as intensely researched the topic of enlightenment and spiritual growth and the physical world. Over the last months I\'ve started writing a book: Step into creation - guidebook for a co-creative universe. Recently I\'ve started a platform "Creating new realities". One of the important lessons I learned is: "you can\'t co-create if you don\'t resonate" and "a little shift in perspective" is often all you need to get back into flow. When I stop resisting, things happen. "When I let go, I know". Behind the known is a infinite field of potential. There lies true excitement. There is infinite inspiration at our disposal. And at the same time, it\'s nice to play with the physical. So to make the world a reflection of our spiritual growth. To let both go hand in hand. To grow and deepen the quality of relationships and communities. To develop the society and create things that represent our love for the world and the mystery of creation. These are some of my most important reflections over my experiences. That\'s what I\'d love to inspire and catalyze! To create realities that are infinitely inspiring and joyful.\xa0\n\nLooking forward to co-create with you!', u'entity_id': 846, u'annotation_id': 4754, u'tag_id': 71, u'entity_type': u'post'}, {u'quote': u'I agree with Alberto, epsecially in terms of having low risk starting points. \xa0Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only "let someone in" after they have demonstrated in some way their worthiness.', u'entity_id': 11618, u'annotation_id': 4753, u'tag_id': 71, u'entity_type': u'comment'}, {u'quote': u"The first is that Fairbnb should help valorize places that are underrated.\nFor example, I'm from Italy (from Rome) and in my opinion, there are so many little places that are worth visiting, is really upsetting knowing that just a few cities here have the attention of international travelers.\xa0\nFor example, I rarely suggest to go in Rome (especially if you are young), go to Sicily if you can :)!!\nMore in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.\n\nI recently randomly read this book http://www.goodreads.com/book/show/13086.Suburban_Nation that I suggest often and that gave me a much deeper knowledge of suburbs.\nFor the countryside, I think that the tendency of the people from this places to go in the major cities could be reversed (especially in Italy) since cities don't represent any more a place of opportunity.\nThis is a much broader argument, but I hope that the platform that we are building could help to experiment new models to solve problems related to this places.", u'entity_id': 25049, u'annotation_id': 4755, u'tag_id': 72, u'entity_type': u'comment'}, {u'quote': u'Takeaway: ideally you find an angle which helps make some aspect of your work attractive to a funder. This validates the project and you, Once you got in the first time then its easier in the next times.', u'entity_id': 38786, u'annotation_id': 11893, u'tag_id': 1944, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 19254, u'annotation_id': 4756, u'tag_id': 73, u'entity_type': u'comment'}, {u'quote': u'Hey @Gentlewest let me post a very technical picture here which has lots of stuff in there (we will probably not even need half of that). This is most of the hardware I have collected around the general idea already.\xa0 I can explain it all in detail, but probably it is best to discuss what you actually NEED first.\n\n\n20170626_120731 (2).jpg2500x1608 404 KB\n\n\n( @Matthias can you increase upload limit a tad, my new phone camera spits out 5.2 MB... this cost me 3 attempts and 30 minutes. Also mentioning this because it is still related to the project we discussed in Nepal context ).\n\nThia here includes many spare parts, a small radio station, a powerful loudspeaker, voice recorders to takes tests and get feedback, etc.\n\nI like your idea about including music - and I had thought something similar. On Jamendo.com we could get free music without any legal trouble. Because the mp3 players are relatively simple (you can only go forward or backward by one complete track) one could put the lecture before the music in the same track. So they would have to listen to the lecture before they get to the music. This will be some extra work in the beginning but I think you made a good point. It is possible to do ALL KINDS of sound editing in a program called audacity (http://sourceforge.net/projects/audacity/) but I think it would be good to find something more simple.\n\nAnother thing one could offer are more or less educational stories - e.g. for language courses (e.g. from Librivox.com). But all that is a different topic.', u'entity_id': 28471, u'annotation_id': 11963, u'tag_id': 1961, u'entity_type': u'comment'}, {u'quote': u'I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made \xa0exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.\xa0\nI will love to work out something with you. Lets connect. get in touch at : (+237) 670708533\n:Looking forward to read from you', u'entity_id': 27830, u'annotation_id': 4759, u'tag_id': 1961, u'entity_type': u'comment'}, {u'quote': u'Hi @Gentlewest I have long thought about a concept for more effective teaching with the help of cheap (repairable) mp3 players and small printed cards for illustrations. The original idea behind this is to reach really rural and remote people and provide them with good access to useful information. But to start this I was thinking about which lectures make most sense - and I think you have a very good example of one (I also agree with @saeed.qaisrani ). So I think the wider topic of hygiene & health would be most helpful.', u'entity_id': 26068, u'annotation_id': 4758, u'tag_id': 1961, u'entity_type': u'comment'}, {u'quote': u"@WinniePoncelet for the local coordination I am a huge fan of audio recordings. Especially if the group is not huge, but maybe not everyone is on the same page, or arrives later - it is great to catch up, or look up things you didn't get the first time around.\nAlso if you eventually want to share parts with another group it gets much easier. Either by writing a (late) summary or (if in English) just pushing part of the convo to them. One nice thing is that a written summary posted will probably have a high fraction of the key terms that are relevant for ethnographic analysis.", u'entity_id': 25699, u'annotation_id': 4757, u'tag_id': 1961, u'entity_type': u'comment'}, {u'quote': u"But the networks I have engaged with are some sessions I've been running on Hacking Reality\xa0and a group set up by Charlotte Pulver in London to get muddy and clear out springs on Hamstead Heath. The\xa0outdoor emphasis of my life at the moment\xa0shifts my interest in networked technologies - more emphasis on\xa0Augmented Reality, GPS for content, lasers and light, alternative communication systems\u2026 Feel you intuitions on care and art are on the right track.", u'entity_id': 20994, u'annotation_id': 4761, u'tag_id': 75, u'entity_type': u'comment'}, {u'quote': u'With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women\u2019s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resource', u'entity_id': 6376, u'annotation_id': 4764, u'tag_id': 76, u'entity_type': u'post'}, {u'quote': u'I always recommend a pragmatic approach: what can be learnt from the obstacles and from the conversations collectively held with authorities? In my experience authorities will share many frustrations expressed here about "certifications", however they will describe the system as "the worst, except all the alternatives"... and in facts, what alternatives are there? Laissez faire? Skin the game? Humankind has been there, done that, and it\'s failures that have brought this style of regulation upon us...', u'entity_id': 38810, u'annotation_id': 11840, u'tag_id': 1933, u'entity_type': u'comment'}, {u'quote': u'Autistic children have limited behaviours about social connections and they can easily get confused from hearing more than one sound when they are outside. We want to help the children to get out into the world without fear. Usually children get very scared of loud noises and it a ects their behaviour. They nd it very intimidating. We propose to care for them by designing a device that lets them hear their parent\u2019s and other familiar voices, phasing out other sounds like those of tra c, crowd, machines etc.\n\xa0\nWhat are the main aspects of this project?\nThe main aspect of this project is to use technology that is not only advanced but also very much user friendly. The prototype will be able to have speech recognition so that it detects the sounds of certain people and lets them through but not intimidating sounds like those of tra c and machines\n\xa0\nHow to?\nWe can\n-use noise cancelling technology and speech recognition software to design the prototype\n-introducing simple gestures to use and control the headphones\n\xa0\nLinks for reference:\nhttp://oureverydaylife.com/use-headphones-children-autism-12460.html\nhttp://www.got-autism.com/blog/?tag=headphones-for-kids-with-asd\n\xa0\n\xa0\nWhat have been done?\nThere hasn\u2019t been anything speci c that has been designed for autistic children that serves the purpose we intend to solve. There have been independent approaches to speech recognition through software and headphones through software.', u'entity_id': 772, u'annotation_id': 4767, u'tag_id': 78, u'entity_type': u'post'}, {u'quote': u'Whether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority.', u'entity_id': 29955, u'annotation_id': 4766, u'tag_id': 78, u'entity_type': u'comment'}, {u'quote': u'the city used to be based on Coal mining and the Steel industry. Now the coal mines are closed, and the Steel mills are manned by robots. There is a very high level of unemployment in the city, and much of the employment that there is is in the public sector - most adults work for the government!', u'entity_id': 1710, u'annotation_id': 4773, u'tag_id': 79, u'entity_type': u'post'}, {u'quote': u"@Patrick_Andrews hello, I was reminded of this post as we are having a conversation on care homes which run on intergenerational care. You might want to have a look here (mentions of other Dutch and American well run facilities too).\n\nWhat do you mean by independent care homes? From the very little I know about the UK care system, many times services are provided by both NHS and affiliated trust foundations whose status is formally semi-autonomous. Also, many times services are signposted to third sector/ independent organisations, which makes me wonder if you see your new organisation working in similar partnerships?\xa0Do \xa0you want to be independent in status or also in your practice - meaning little or no collaboration with the existing system as it is now? I'm curious about the positioning, and it can also be relevant for our research. Also ping @Tino_Sanandaji for possible interest in this.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentcare homes\n  \n    \n    Edit\n    Delete\n  \nNo Commentautonomy\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 20540, u'annotation_id': 11968, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'We missed you @Woodbinehealth , welcome back. I\'m very sorry for your\xa0loss, can\'t even begin to imagine.\n\nJust this morning I was reading this @politicalbeauty/aggressive-humanism-bbff64cf4296">"manifesto" on aggressive humanism by the artistic-militant group in Berlin called Center for Political Beauty. Even their name, aside from tactics,\xa0is just so inspiring.\xa0It reminded me of you guys somehow, the grit..\xa0\n\nAutonomous mental health infrastructure:\xa0that is what I would prioritize as well for your participation at OpenVillage Festival. How would you see an interaction with the opencare community happening in brussels? in an effective way that supports your own mission. From\xa0the top of my head, priming the\xa0conversation with key\xa0questions around which we could gather initial experiences ahead of the event?\xa0or..?\n\nFor skill sharing and practical activities, @steelweaver was proposing to demonstrate an acupuncture micro clinic at the event - could we add to that something you guys want to share i.e. teaching others, body fitness classes etc?', u'entity_id': 6557, u'annotation_id': 11967, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"@Patrick_Andrews hello, I was reminded of this post as we are having a conversation on care homes which run on intergenerational care. You might want to have a look here (mentions of other Dutch and American well run facilities too).\n\nWhat do you mean by independent care homes? From the very little I know about the UK care system, many times services are provided by both NHS and affiliated trust foundations whose status is formally semi-autonomous. Also, many times services are signposted to third sector/ independent organisations, which makes me wonder if you see your new organisation working in similar partnerships?\xa0Do \xa0you want to be independent in status or also in your practice - meaning little or no collaboration with the existing system as it is now? I'm curious about the positioning, and it can also be relevant for our research. Also ping @Tino_Sanandaji for possible interest in this.", u'entity_id': 20540, u'annotation_id': 11964, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'It will be nice to have more time to talk than the last time at Cern into the Biofabbing context. Your thinking is addressing most of the worries about what it is and what can be this movement that for years we were thinking and acting. Into my close environment as living at "autonomous" community Calafou and Pechblenda lab and being active at Hackteria network more for the needed than for entertainment.', u'entity_id': 38478, u'annotation_id': 11833, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"In addition to what Winnie writes above, I would say the first day panel on infrastructures for autonomy would benefit massively from your insights:  Your understanding of the community dynamics but also government resistance. The take seems to be: where collaboration is not possible, but some of the people in the room might be more optimist. We'll see. For example, @cindys has been mobilizing groups to do citizen science, maybe there's examples she can share where barriers have been torn?", u'entity_id': 37423, u'annotation_id': 11803, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11778, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'Podcast Description: "This way of life is a war against our bodies. The air polluting our lungs, our breast milk filled with toxins, and our mental angst driving us to suicide. Proposed health cuts increase our general precarity in relation to a failing health system, a health system that fundamentally furthers our objectification and dependency on capital. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy. We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. From the Greek solidarity clinics to the Zapatistas \u201chealthcare from below\u201d to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. We begin by finding each other. This podcast will be a step in that journey."', u'entity_id': 35814, u'annotation_id': 11588, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'Vision\n\n\xa0A holistic, integral, evolutionary, self-directed and self-integrated community (civilization).\n\nPurpose\n\nTo continuously and consciously evolve toward our highest potential through resilient adaptation to experiential existence.\n\nTo collaboratively design, develop, and implement the blueprint for an intentional need-fulfillment community where purposefully driven individuals are fulfilled in their development toward their highest potential state of human experience for themselves and all others.\n\nThe CAPE Project has a low entrance barrier for collaborators, participators, and community builders. With that said, however, there can be a substantial learning curve when it comes to acquiring a comprehensive understanding of what is actually being proposed by the Project. It is important to remember that this community proposal represents an entirely different linguistic worldview than most (if not all) other worldviews present in modern society. Fundamentally, the Community\u2019s design describes an entirely divergent way of living and of understanding reality than the many worldviews expressed among the current population of the planet. This can present a significant motivating challenge for those interested in this direction. The design specifications are dense in content and many individuals who read them for the first time feel like they are learning a new language and integrating a new worldview, which takes time and requires internal processing.First Steps and Key Features\n\nAs a first step we are going to establish a \u201cTraining and Research Network\u201d - primarily for tertiary education | higher education - to enable educators to understand and facilitate the train of thought of an integral, holistic, evolutionary, self-directed, self-integrated and self-civilization and are looking for places to establish training and cultural exchange centers. With tis comes an network of self organizing solidly co-habitational care Nuklei.\n\nAs we have to exist within a framework of formal-operational rules (orange), at best early vision-logic (green), we have to establish a set of \u201corganizational-bodies\u201d to support the idea in the best way possible.\n\nThe key features have to be adapted as part of part of a living organisation! To date, our core themes are:\n\n\n\n\nNew Learning\n\n\n\n\nCreating Creative Learning (Spaces)\n\n\n\n\n\n\n\nCommunication\n\n\n\n\nArt\n\n\nintegral News Communication\n\n\n\n\n\n\n\n\xa0Socio-Economic Development\n\n\n\n\nNew socio-economic systems that focus on resource availability;\n\n\nexperience an reserch a new way of care for each other including health care and social security aspects;\n\n\ndeveloopment of strategies for mental health and healty living environments;\n\n\n\n\n\n\n\nIntegral Leadership, integral management systems\n\n\n\n\nliving- and holonic organizations, Assessment, creating \u201cSelforganizing Open Hierarchical Order\u201d Systems, (olocracy)\n\n\ncentre attention on the evolution of human values and consciousness as the crucial factors in changing course \u2014 from a race towards degradation, polarization and disaster to a rethinking of values and priorities so as to navigate today\'s transformation in the direction of humanism, ethics and global sustainability" Ervin Laszlo\n\n\n\n\n\n\n\nSustainable Engineering and Application\n\n\n\n\nApplication of sustainable energy production;\n\n\nHigh-Tech in ecological production processes.\n\n\n\n\n\n\n\n\nThe design for the community is not yet sufficiently complete to plan its implementation. However, we presently have a \u2018scope of work\u2019, and we are in the process of converting it into a comprehensive project plan.\n\nWe are initiateing multilingual communities and living space with people who focus primarily on inner development. Where we are working on our consciousness, because the crisis in our society is a crisis of consciousness. We shift our focus inwards, develop our relationship skills and transform our social programming. There should be as few fixed guidelines as possible concerning the personality and lifestyle of the members except the common to work toward a higher level of development. There are no ideologies, no dogmatic requirements and no fixed concepts.\u201cCAPE\xa0 aims to build a social net for the members, enacts "share & care" principles and provides a framework (legal body) for cooperative economy as well as a space for inter-generational "new", action based, co-operative learning.\nCAPE should be a special place for members and learners to revive, a place to flourish, a place for young and old. Sustainable mental health is a result of continuous enthusiasm to our own development and a willingness reconstruct our beliefs.\nWe, the initiators of CAPE LearnLust & Living think that the acceleration of our lives and the deluge of controversy, often absurd and paranoid information from an ailing socio-economic structure leads to the desire of many people for contemplation, inversion and a return to ethical values that are inherent to all human beings, but in "our experienced world" increasingly seem to disappear. Sincere joy, love for everything around us, to nature, compassion for each other, time to talk, to feel and enjoy, no longer being so tense and stretched - internally driven, yet not knowing where to go.\nAutonomous and healthy life for the young and the joyful old. To create the miracle called "we", which awakens us to renewed life! To unmask the process of maturing as ripening and getting wise. Therefore, we are now tackling this \u2026\nWhat do we perceive? Today our society offers almost unlimited possibilities. This diversity can lead us humans to exhaustion, confusion and disorientation, to sensory overload, burnout! Therefore, every human being is faced with the challenge of finding answers to the following questions:\n\n\n\nWho am I really?\n\n\nWhy am I here?\n\n\nWho or what gives me meaning and footing?\n\n\nWhat is my inherent value?\n\n\nWhere do I want to go?\n\n\nOur goal is to develop as a group to the extent that we understand each other at the height of the developmental stage now possible. These levels of human development are researched and described scientifically. It does not matter at what age we come together, it\'s fun and is exciting to get to know thyself and develop. As pioneers of a new action based, co-operative learning we share our special talents and skills with those interested. We are convinced that sustainable social change in the global community depends on the quality of personal development, training and the ability to effectively and constructively communicate with others. The focus is on interaction and cooperation, shared responsibility and authority, and the improvement of critical thinking. There is no \'teacher\' in the traditional sense. Learning will be self-organizing, dynamically adjusted to needs and ideas of the "learners".', u'entity_id': 765, u'annotation_id': 11966, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'How can we help individuals be independent from official caring services?', u'entity_id': 541, u'annotation_id': 11965, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u"All interesting insights on which to build. Another\xa0area that is opening up through these conversations starts to re-evaluate\xa0the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.\xa0\nA number of threads of\xa0conversation\xa0touched on this issue of responsibility. @Alberto\xa0referenced the Amish refusal of health insurance on the grounds that it \u2018de-responsibilises\u2019 people. Conversation with Wendy Ball explored her recent intervention in a street fight and how \u2018externalising responsibility\u2019 for care creates dependency on state responses -\xa0turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.", u'entity_id': 6462, u'annotation_id': 4813, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u"Roles & responsibilities\nAll interesting insights on which to build. Another\xa0area that is opening up through these conversations starts to re-evaluate\xa0the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.\xa0\nA number of threads of\xa0conversation\xa0touched on this issue of responsibility. @Alberto\xa0referenced the Amish refusal of health insurance on the grounds that it \u2018de-responsibilises\u2019 people. Conversation with Wendy Ball explored her recent intervention in a street fight and how \u2018externalising responsibility\u2019 for care creates dependency on state responses -\xa0turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.", u'entity_id': 6462, u'annotation_id': 4812, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'I look forward to continuing the conversation! \xa0As for practical things, I think a larger question we have is the role of networks in creating autonomy, how to build structures that increase autonomy not just something that replicates Silicon Valley mindsets. \xa0Also for skills, maybe something aroudn the very act of giving skills. \xa0How we plan out our skill shares and what are the main purposes (i.e beyond just passing on knowledge).', u'entity_id': 20144, u'annotation_id': 4811, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'We don\u2019t bring these up to merely add to the general devastation. But because they are our reality. They exist and to not acknowledge that is to cover ourselves with superficial banalities. The crises that continue to arise are merely symptoms of the disintegration of a way of being in the world that is becoming rapidly untenable. So when we think of care, we must take on the task of being a bridge to a new way of being. \xa0\nAt Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health. \xa0We have been experimenting with different projects and finding ways to build community. We\u2019ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of \u201cskill shares\u201d, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and care.\nWith the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women\u2019s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy. \xa0\nWe believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. \xa0From the Greek solidarity clinics to the Zapatistas \u201chealthcare from below\u201d to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. \xa0We begin by finding each other.', u'entity_id': 6376, u'annotation_id': 4810, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u"have\xa0to forget that terrible sentence, you're a girl, you you have to let go, you have to listen, \xa0you must be good,\xa0obedient\nWell, \xa0you do not have to do anything\nBe good and obedient and you'll be good and obedient patients\nIf you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default, \xa0you can be scientist, pilot, astroanut, everything you want\nOf course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing, \xa0to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and \xa0works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable\xa0and smart and successful women, because obviously while men are leding,\xa0we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give\xa0positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is \xa0always something wrong , they have to be perfect to be loved because they are \xa0upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie\xa0and \xa0to be good...\nIt is a great theme, and very serious and \xa0requires indispensable\xa0large and big steps to make the change, so we\xa0won't\xa0any more\xa0read about dark statistics or to be a part of it,\nI forgot about inadequate or not existing\xa0 health status of women and treating them, how horrible gynecologist acting,\xa0a large number of cancers that are not detected at time, shame, \xa0when they\xa0give birth listen insults and so on...", u'entity_id': 858, u'annotation_id': 4809, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u', thanks for the comments. \xa0While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health. \xa0At this point in NYC, there is still infrastructure for primary care and physical care within institutions. \xa0In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more "primary care" functions. \xa0But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health. \xa0In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here. \xa0We are thinking of treating acute mental health episodes, but to form the foundation for "preventative" communal mental health.', u'entity_id': 26065, u'annotation_id': 4808, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 4807, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'Have you, by any chance, read this\xa0https://aeon.co/ideas/descartes-was-wrong-a-person-is-a-person-through-other-persons or anything along the line, recently? There is a renewed interest in the role of social inclusion (or lack thereof) as the root rather than the consequence of mental health\xa0challenges... And I very much like that you suggest to connect the topic to reflections about the hyped citizenship income, and the nature of work. How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?', u'entity_id': 26676, u'annotation_id': 4806, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 4805, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community\u2019s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.', u'entity_id': 741, u'annotation_id': 4804, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u"You might want to get in touch with members\xa0in Milano for a slightly different problem and approach -\xa0they zoomed in on the\xa0problem\xa0of\xa0wheelchair mobility and how\xa0disabled\xa0people can't push their own wheelchairs and\xa0be on their own. Better designed\xa0wheelchairs\xa0would ideally increase one's autonomy and freedom to move. It takes\xa0out of the equation the need to be accompanied at any step,\xa0which is after all a practical reality identified by the group in discussions and something which can affect how others treat you. \xa0It would be interesting to study how perspective differ\xa0- what goes on in people's heads when they see someone helped versus\xa0when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here's the idea where you can get in touch for more info.", u'entity_id': 8596, u'annotation_id': 4803, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"Seeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools?\nBoredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better.\nAt this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.", u'entity_id': 26014, u'annotation_id': 4802, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'As time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, "belittled" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn\'t spend much time on this project so my answer to my question might sound cheesy.\xa0\xa0I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that\xa0time to work out.', u'entity_id': 23723, u'annotation_id': 4801, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"The area I focused on\xa0was disability. I interviewed a few people on the street who were in a wheelchair, and did a half day experiment rolling myself in a wheelchair. It was quite an experience I have to say. I suddenly\xa0found myself shorter than everyone else --\xa0both physically and psychologically. Many people offered me help, and of course I told them the truth, but I felt if I were really disabled, I wouldn't simply say yes because I wouldn't want to trouble others and\xa0would want to be as independent as possible. On the other hand, when I see a handicapped person, and a few of my classmates agreed on this, sometimes I am not sure if I should help him/her because I don't want to assume that they can't perform\xa0certain actions and offend them.", u'entity_id': 23723, u'annotation_id': 4800, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"A lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to\xa0help\xa0of their agency;\xa0their freedom to act normally.", u'entity_id': 20040, u'annotation_id': 4799, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"So how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It's clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?", u'entity_id': 665, u'annotation_id': 4798, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'http://www.seva.org\nhas been working to save eyesight in Nepal for many years. \xa0SEVA was co-founded by Dr. Larry Brilliant, who co-founded The WELL. \xa0I don\'t know if they work directly with Dr. Ruit, but it would not surprise me.\nFrom the SEVA website, "Since 1978, Seva has worked with partners in Nepal to develop a network of eye care providers and services. Seva Nepal, a local Seva Foundation office, supports continuing medical education, professional training, and provides surgical equipment and supplies, all of which serve to increase the quality of patient care.\xa0\n\nAll aspects of Seva Nepal\u2019s programs serve to build the capacity of local hospitals to deliver high quality, sustainable eye care. By equipping our partners with the tools they need to provide quality, efficient services, Seva builds locally-run eye care programs that are self-sustaining within 5-10 years of establishment."', u'entity_id': 20294, u'annotation_id': 4797, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'Have seen good examples of "care villages" elsewhere, especially designed to deal with dementia and Alzheimer\'s cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused\xa0society.', u'entity_id': 26047, u'annotation_id': 4795, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about.\nI frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn)\nCreating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.", u'entity_id': 22200, u'annotation_id': 4794, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'Assist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible.\n \n\nIn collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides.\n \n\nSave Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land\u2019s status as a common good.\n \n\nIncrease awareness and offer technical support, training, and tools to create CSA schemes around the country.\n \n\nPromote the creation of Food Policy Councils around the country.\n \n\nBecome the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources.\n \n\nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes.\n \n\nSo if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces', u'entity_id': 560, u'annotation_id': 4793, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That\u2019s our dream.', u'entity_id': 758, u'annotation_id': 4792, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called \u201cReal Food Utopia\u201d as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts).\nThe workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it.\nI am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad.\nI am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.\xa0 I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains.\nWe would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects.\nWe are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an \u201cumbrella\u201d project which consists of several innovative schemes.\nThe main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece\u2019s rural areas and promote an economy that is based on social solidarity and alternative currencies.\nWhat we have in mind is summarized in the following fields of action:\n\n\nExporting network of agricultural products in Northern Europe (especially citrus, olive oil and \u201cugly\u201d fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices.\n \n\nPromotion of food security and food sovereignty in Greece.\n \n\nRespond to the mainstream challenges by using our ingenuity and creativity for social \u2013nonpersonal- benefits.\n \n\nReduce food waste promoting \u201cugly\u201d fruits and vegetables focusing on good quality.\n \n\nBoost local economies and offer technical support to Community Supported Agriculture schemes.\n \n\nCreation of an official Greek hub for non formal groups working on food sovereignty that lack financial support.\n \n\nSaving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership.\n \nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group.", u'entity_id': 750, u'annotation_id': 4791, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'At the time, I had proposed we roll out a challenge on autonomy and responsibility. Pre-welfare states (19th century), welfare was basically invented by European mutual assistance societies, in turn part of the workers\' movement. I imagine that, in the early days, these societies were small enough that the choice of treating someone would visibily drain the common pool of resources. So, in those days, maybe European factory workers thought a bit more like the Amish. A modern-day version of that, though I only know anecdotes about it, is implemented by @lasindias .\xa0\nI think autonomy\xa0is also an interesting scenario in terms of policy, and fits well into @Lakomaa \'s and @Tino_Sanandaji \'s institutional economics framework.\xa0\nMy summary from the article:\xa0\n\nThe Amish refuse to have insurance. "When someone gets sick, the church collects alms to help the patient cover expenses."\nThis might happen at a time when the community has other objectives as well ("setting up a farm for a young couple"). You can ask of the community to support your treatment, but its\xa0costs are not simply discharged into an anonymous "system": they are borne by your own brothers and sisters. As a result, everyone focuses on not spending more money than is necessary, and\xa0"[Amish] communities are highly interested in health education and disease prevention".\nFor this reason, the Amish use genetic screening of children. Prevention is so important that its benefits trump the disadvantages of dealing with the world at large.\nThey develop their own treatments (one for burns is described in the article). They navigate, with some difficulties, the interface with the mainstream medical world: clinical testing etc. These treatments tend to be very cheap.\xa0\nCommunities negotiate discounts, which hospitals are willing to offer in exchange for payment in full at the time of service. In one example (a child treated with surgery for colon cancer) price was negotiated down to 19,000 USD from 172,000, a 90% discount. "For Americans with health insurance, it may come as a surprise that hospital costs are negotiable".\xa0\nThe Amish don\'t sue. "When the Amish told [a doctor]\xa0they understand doctors are human and make mistakes, he had to pause to let that sink in. To them, he was not simply a member of the medical establishment, but an autonomous individual doing his best, given the choices and information before him."', u'entity_id': 14083, u'annotation_id': 4790, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'@Susa and I\xa0had a chat with Glenn from the Woodbine collective in New York about their own approaches towards building autonomous and resilient communities. And they are especially interesting to me because unlike the Amish, they are in the starting phase. As Glenn described it a subgroup in the Occupy movement decided that they would focus their energy on teaching themselves, and others,\xa0to become self-reliant communities. They do this through a kind of structured learning program along tracks, when we spoke they were just about to start building the health track. Which reminds me, I need to get back in touch with them!', u'entity_id': 6704, u'annotation_id': 4789, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'I came across this great article on how the Amish culture and their approach towards healthcare\xa0in the United States. The Amish -\xa0a culture of independance and thrift may be a way to balance community support and individual responsibility. A cost-conscious,\xa0community-based take on American healthcare may be able to teach the general population a thing or two about dealing with a broken healthcare system. Health care practices vary considerably across Amish communities and from family to family. Many Amish use modern medical services, but others turn to alternative forms of treatment within their community. \xa0The Amish society accepts responsibility for their own actions and chooses not to depend on services offered by the state and Amish communities opt out of the government-funded insurance. Opposed to commercial insurance and they pride themselves on taking care of their own. To assist one another, they willingly offer donations when a member of their community becomes ill.\xa0It may not fit in this area, but I thought it was an interesting read a thought I would share. \xa0\nExcerpt from the article: \xa0\nPlain communities are highly interested in health education and disease prevention.\xa0Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system.\n\u201cIn the Amish world, healthcare is seen as a ministry,\u201d says Wengerd, \u201cwhich is exactly what healthcare in the [non-Plain] world used to be.\u201d Remember apprenticeships and house calls? The doctor used to be viewed like a minister who sacrificed his life for the patient, but there has been a shift. \u201cThe patient now sacrifices his livelihood for the doctor\u2019s wellbeing.\u201d \xa0\nRead the full article here : \xa0http://qz.com/695101/the-amish-understand-a-crucial-element-of-modern-medicine-that-most-americans-dont/', u'entity_id': 713, u'annotation_id': 4788, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'I am interested in creating a new agricultural production model, focusing on agroecology and self-sufficiency and I believe we need to pursue the transition to a new way of thinking and living. We live in a time of confluence where the old and the new are still co-existing and that creates a very challenging atmosphere, so people need support, tools and skills to make it through.\nWe need to get involved with things like Community Supported Agriculture (CSA); sharing risks, responsibilities and rewards between growers and eaters of food, creating a new concept of human relationships, and new kinds of communities. Out of the ten million inhabitants of Greece almost half live in the area around Athens and one in Thessaloniki. There are whole regions -especially in the mountainous parts of the country, filled with ghost towns. The cities are dying due to the continuous austerity packs that suffocate entrepreneurship and chances of finding work. We need to revive rural areas by promoting small-scale agriculture, empowering farmers and inspiring rural lifestyle, by combining traditions and technology, and promote an economy based on social solidarity and alternative currencies. \xa0\nThis is also, in its heart, a political issue: we need to emancipate ourselves as political beings, as citizens and as consumers and we need to create a new way for governing and caring for our societies and be responsible custodians of the abundance of nature for ourselves and all other species and for the generations to come. \xa0\xa0\n*For my take on the crisis as a \u201cvirtual crisis\u201d and what it means for our food, please watch my\xa0short speech\xa0during\xa0Solikon Berlin\xa0(The Solidarity Economy European Congress 2015) last year.', u'entity_id': 559, u'annotation_id': 4787, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'Many blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight. \xa0The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities.', u'entity_id': 701, u'annotation_id': 4796, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'Indeed distributed decision making processes\xa0(cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them),\xa0the autonomy of each team and individual in his/her area of competence and responsibility\xa0(where each person\xa0is sometimes leader\xa0and sometimes follower)\xa0combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones\xa0to move forward in the right direction.', u'entity_id': 24331, u'annotation_id': 4786, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'Until doing my masters, the disabled people were an unknown phenomenon to me. They were not seen, not talked about. I was introduced to young people suddenly wheelchair bound with very limited personal independence due to a spinal cord injury. \xa0They were really nice people and kindly explained about the complexity of such sudden change in abilities and about the need to regain some functional movements.', u'entity_id': 516, u'annotation_id': 4785, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.', u'entity_id': 5886, u'annotation_id': 4784, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care\xa0(twitter link)', u'entity_id': 790, u'annotation_id': 4783, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u"Now, at the point when she is starting to struggle with self care (and here i definitely agree with @johncoate 's view that there is a stubborness and irrational sense of personal independence in their generation) more of the balance of looking after her falls on her kids, whose lives have been so different from hers.", u'entity_id': 27819, u'annotation_id': 4782, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"Like in John's description, my mother and her sisters and cousins are fiercely independent and would absolutely loathe becoming dependent, even on us.\xa0", u'entity_id': 26050, u'annotation_id': 4781, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u"Interesting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is.\xa0The impossibility\xa0seems to be\xa0in our inability to provide deeper care when people fall through the cracks -\xa0if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her/himself. \xa0I see people coping at most, because there is no real\xa0choice and assessment of the situation outside constraints.", u'entity_id': 21658, u'annotation_id': 4780, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'But I think at least when it comes to that WWII generation in the US, a very large number of them want to keep their independence as long as humanly possible. \xa0They don\'t want to live with the family and they don\'t want to cede authority over their "space" to any of their kids. \xa0So, it isn\'t all neglect and self-interest. \xa0I know a lot of people my age who have parents who don\'t want to move in, or they do it as a kind of last resort.', u'entity_id': 21579, u'annotation_id': 4779, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 4778, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'Very interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word "autonomy" in the sense of "a state of\xa0not\xa0having to be coupled with the world at large in a way we find troubling." Some people in Edgeryders uphold a similar concept, dependency reduction.', u'entity_id': 20474, u'annotation_id': 4777, u'tag_id': 80, u'entity_type': u'comment'}, {u'quote': u'removing our physical and mental minds from an oppressive system, to reclaim our control over health and use health to increase our collective autonomy.', u'entity_id': 521, u'annotation_id': 4776, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'building autonomy in the wake of a dying culture', u'entity_id': 521, u'annotation_id': 4775, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'preserving autonomy', u'entity_id': 720, u'annotation_id': 4774, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'[Editor note: The following notes were made during the "Woodbine and ZAD of Notre-Dame-des-Landes", of OpenVillage Festival (19th October 2017). Quotes are not verbatim but summarize what was said. If you feel something is mis-represented, please tell us in a comment or with the "Flag \u2192 Something Else" feature and a mod will fix it. \u2013 @anu]\n\nWOODBINE Intro:\n\nWe are a collective in NYC, \u201cagainst the end of the world\u201d = against the nihilism across the country, the end of American empire, the end of a worldA revolution is a line that we draw in the present not the future. 50% of individual bankruptcies are due to a medical bill. More than 50% of Americans can\'t cover the bill for an ER\n\n(Podcast skillshareLand upstate)\n\nZAD presentation:\n\nNamid, Liliana, Sara, Claire\n\nLand occupation set up to fight an airport project, in a struggle for 15 yrs. The occupation movement exists only for 8 yrs, created through a call out. 10 square km, as big as the biggest villages in France. 200-300 people who made the choice to live there. Several thousands involved. Organizing without state infrastructures. How to avoid relations of domination, hierarchy, specialization. Collective autonomy. Diversity of thoughts, but fascists not welcome. \n\nHow they organize:\n\nDaft structurescabins, farmhouses, tents. A lot of agriculture with machines, collective gardens - grain and beans to feed a nonmarket and support other struggles.\n\nThey built a lot of infrastructure: spaces for tractor mechanics, woodwork, preservation spaces. Weekly newspaper, radio, website zad.nadir.org, welcome houses, internal telecom network. No police, no justice. Conflict mediation group. Autonomous health care. Some people don\'t have health insurance, no legal papers, or access to cars or phone to do paperwork in the city. Fugitives, people traumatized by the medic system. \n\n4 spaces of care:\n\nLa transfuse cabin for first aid, Trailer Medic for free/cheap medical assistance, Varies Rouge medical house a collective living there similar to a hospital, Medicinal Cabin for storing and drying medicinal plants. \n\nVaries Rouges:\n\nSees 10 25 people a week, medical problems or who want a tattoo for their dog. At least 1 person available that can do care - a mix of self aid and accompanying medical surgeries - opened wounds, dog attacks, police.All materials are donated, i.e. by hospitals, medicine are free prices, tinctures are one tenth of retails, support group of professional. We\'re not trying to do everything or be the heroes, but there\'s a lot we can do. \n\nWe help people without papers to get into medical institutions, and take responsibility for it. \n\nCARE for people  caught in armed conflicts I.e. with the police in demonstrations - rubber bullet injuries, grenades. Fight the part of the state that is intentionally hurting its people. \n\nTrainings:\n\nShort, for life vital help and first aid. 9 day for people in the zed, in a certain region so afterwards they can work together in their city, for example in demonstrations.A network of people who\'ve been through these trainings (80) so they can call out to the other groups. Easier to organize together because they have the same protocols.\n\nWe grow our own medicine in the medicinal garden and harvest them. Use them in consultations for chronic problems.Regular Drop in clinics for exchanges, training and giving care at the same time.\n\nAbout mental health:\n\nNo filter, anyone can come when they want. We\'re now at the step of collecting information and finding professionals support.\n\nWhy do we do this? To take control of what happens with our lives, put ourselves on a learning path. The person who has the power to decide is not the same as the person who has the knowledge about their body.\n\nImportant to work in teams:\n\nWe are not experts. In emergency situations, it\'s important to be 2.To build a base of knowledge to be collectively autonomous. Yes we live 20mins away from the hospital, but do they come in 20mins? No.\n\n\n\nREFLECTION:\n\n\nWhat does health autonomy look like for you?\nHow does your work or expertise contribute to that? \nWhat is it that you need, the next step for you?\n\n\n\nEugenia:\n\nArtist and ecologist\nProject How to perform an abortion.Reproductive health Laws are flawed. Autonomy is accountability.The space in which I\'m most vulnerable is when I\'m ignorant - ie when I enter a hospital.The next steps: continue this work, reintroducing women to a knowledge that was robbed from them.\n\n\n\n\nGeorgie:\nAutonomy is My ability to recognise my health care needs and ability to respond to them on a group level.\n\n\n\nBernard:\nHow do I stay healthy until I\'m 60 and over, and how to die well. My steps: Movement yoga, group collaboration, nursing etc. Wants to be connected to group services - maybe connection with mainstream services? \n\n\nKashi:\nFrom a mental health group in Ireland.\n\n\nTerineh:\n\nThe Canaries, from Nyc, thinking outside of medical crises. Using arts as a place to reimagine infrastructures of care and psychosomatic healing. Over 80 autoimmune diseases, not known if it\'s caused by genetic or environmental causes. You need to find group support. 100 on the list sharing info and resources. Difficult because we are spread out and hard to support each other materially. \nBeing a support group for the disabled :Crip time when you don\'t have the energy to actually get that information. At odds with insurrectional anarchism. \nInterested in how we link with other people outside of our own and how to support that. \n\n\n\nTori:\nHow we can consent to things that happen to our body.PS: research on these practices and sharing info while building own tools. Trying to understand more tools for consensus decision making We feel exhausted\n\n\nMichael:\nAutonomy as agency. In the role of filling gaps: caring through technical skills, getting people to tell their stories better that are not the same as them\n\n\nZAD:\nAutonomy is the contrary to what you see in France and Belgium - a GP having 1000 people in care who all rely on him. Works 70hrs a week and is exhausted. In one community there are many people who can offer information and help. \n\n\n\nNadia:\n\n\nDiagnostic autonomy: feel confident in one\'s ability to understand their problem.\nKnowing where to go - organized knowledge ie barefoot doctor manual and having a contemporary equivalent. \n\nThe issue of navigating health care.\nformalized access to services and formalized', u'entity_id': 38787, u'annotation_id': 11880, u'tag_id': 80, u'entity_type': u'post'}, {u'quote': u'AuxiLife', u'entity_id': 34574, u'annotation_id': 12106, u'tag_id': 2306, u'entity_type': u'post'}, {u'quote': u'I met simply as humans experiencing the world, rather than classifying some as\xa0experiencing states that were\xa0"abnormal" or could be classed as\xa0"mentally ill")\xa0felt like a helpful thing -\xa0the urge to have one\'s experience understood unites everyone.', u'entity_id': 16456, u'annotation_id': 4814, u'tag_id': 82, u'entity_type': u'comment'}, {u'quote': u'My takehome is about the footprints of what we do. Alberto\u2019s Kathmandu example is that his project did not clean up the rivers, but it did increase the awareness that the rivers are polluted. John\u2019s clinic is up and running, so that\u2019s a fantastic footprint.\n\n\nHenry:', u'entity_id': 38811, u'annotation_id': 11747, u'tag_id': 83, u'entity_type': u'post'}, {u'quote': u"I hope we can 'break out' more with these ideas, especially with the next generation!  I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)!  It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentconnecting with schools\n\n  \n    \n    \n      Cancel\nSave", u'entity_id': 38981, u'annotation_id': 11735, u'tag_id': 83, u'entity_type': u'comment'}, {u'quote': u'As a result, no single government or NGO organisation has responsibility for the activities and structures on camp. Everything that has grown up has happened through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK.', u'entity_id': 39328, u'annotation_id': 11621, u'tag_id': 83, u'entity_type': u'post'}, {u'quote': u'You can find out more about a numbers of the organisations that work on the site by visiting [http://www.calaidipedia.co.uk/breaking-news] or by reading the No Borders document [https://welcometocalais.files.wordpress.com/2015/10/welcome-to-calais-booklet_eng_updatedoct15.pdf]', u'entity_id': 39328, u'annotation_id': 11619, u'tag_id': 83, u'entity_type': u'post'}, {u'quote': u'Tools: Street Nurses develops prevention tools and information packages to raise awareness among homeless persons about the importance of personal care and health, to give them better access to care and to facilitate their medium - to long-term rehabilitation. Certain tools, however, are aimed at raising awareness among the general public about the situation of homeless people. Examples: list of showers in Brussels, map of fountains and free public conveniences, symptoms and interventions in case of hypothermia, Frostbite prevention poster, Heat stroke prevention poster', u'entity_id': 767, u'annotation_id': 4816, u'tag_id': 83, u'entity_type': u'post'}, {u'quote': u'INSPIRATION\nThere are a number of inspiring projects who deal with exactly this issue of awareness. One clever way artists are spreading awareness is over the internet. Tumblr users like Rubyetc, Beth Evans or Sarah\u2019s Scribbles have gained quite a following with their funny, relatable comics about everyday struggles. Seeing that you are not alone in your suffering can be very comforting. Recently, illustrator Gemma Correll created a series of drawings as part of an online awareness campaign for Mental Health America to visualize what #mentalillnessfeelslike. Their campaign encourages people to open up about their conditions and harvest the power of sharing.', u'entity_id': 511, u'annotation_id': 4815, u'tag_id': 83, u'entity_type': u'post'}, {u'quote': u'refugee camps could sprout many more and better services if people were allowed to provide for each other. Score one for self organization.', u'entity_id': 39333, u'annotation_id': 11637, u'tag_id': 83, u'entity_type': u'comment'}, {u'quote': u'It is frequently in our papers and on our televisions, yet beyond the UK and the direct environment of Calais the Calais camp has not received the kind of attention it deserves.', u'entity_id': 39328, u'annotation_id': 11616, u'tag_id': 83, u'entity_type': u'post'}, {u'quote': u'the kind of attention it deserves', u'entity_id': 39328, u'annotation_id': 11614, u'tag_id': 83, u'entity_type': u'post'}, {u'quote': u'In some case, mom has to leave her baby to cry.', u'entity_id': 776, u'annotation_id': 4817, u'tag_id': 84, u'entity_type': u'post'}, {u'quote': u"@Noemi I mention @To-Steki in my story but it was before it's participation so I must correct the name and tag it. About 6 months the people from Steki made the delivery of all of those backpacks (that I was preparing) to Eidomeni. And we have had a very good cooperation. By the way, in Thessaloniki there are many active and solidarity groups. In their own way but active and helpful! This list is in greek but maybe you can have an idea.It's a short mapping of Thessaloniki's Municipality area\xa0 http://www.thessaloniki.gr/userfiles/file/Dioikisi(NeosOEY)/AytTmEthelNeolaias/LISTA1842016.pdf", u'entity_id': 19323, u'annotation_id': 4818, u'tag_id': 85, u'entity_type': u'comment'}, {u'quote': u'The previous scene sums up the role of our government in our lives, a direct enemy you try to avoid day by day, and freedom of expression is guaranteed on the walls of bathrooms in prisons.', u'entity_id': 797, u'annotation_id': 4819, u'tag_id': 86, u'entity_type': u'post'}, {u'quote': u"I think a basic income for everyone would be a good start to an alternative economy. It would tackle the fear of not having enough. Thus, everyone of us could contribute freely to society providing things and services we're good at. For me (traumatherapist on wheels) it would be a perfect solution : be able to work / to give to the world without having to think about 'will I earn enough mony doing so?'\nIn Finland, a basic income experiment is on its way - I am very curious what the outcome will be, and, eventually, how this wil change economy and society!", u'entity_id': 27793, u'annotation_id': 4825, u'tag_id': 88, u'entity_type': u'comment'}, {u'quote': u"Whaaa that would be a dream, but in Brussels for 'safety reasons' we can't BBQ in any park in the region, i'm really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don't have any open air pool in Brussels either", u'entity_id': 18277, u'annotation_id': 11969, u'tag_id': 1963, u'entity_type': u'comment'}, {u'quote': u"I love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.\xa0\n\nProblem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!\xa0\n\nGood luck with the project and keep us up to date!", u'entity_id': 14420, u'annotation_id': 4827, u'tag_id': 1963, u'entity_type': u'comment'}, {u'quote': u'Seriously? In Italy BBQs in the park are big \u2013 well, in Milano at least, now that I think of it I never saw it done in Emilia Romagna. I think the fad was started by the Peruvian community, who moved in in force. There are even web pages on "the best parks to do BBQ in Milan", or Rome, or whatever:\xa0http://www.viaggiamo.it/parchi-dove-fare-grigliate-a-milano/\nThis is fairly typical:', u'entity_id': 17140, u'annotation_id': 4826, u'tag_id': 1963, u'entity_type': u'comment'}, {u'quote': u"This is not just informative, it's\xa0literary.\xa0And I sometimes wonder if you don't need the beauty for the information to hit home.", u'entity_id': 21551, u'annotation_id': 4828, u'tag_id': 90, u'entity_type': u'comment'}, {u'quote': u'We love our people, our monuments, our trees, our bats and cats that come at night, and\xa0anybody else in the world who feels like us and realizes that this world should not belong to speculating private monsters or to cold public machines.', u'entity_id': 21382, u'annotation_id': 4830, u'tag_id': 91, u'entity_type': u'comment'}, {u'quote': u'The issue of addressing bed-blocking, specifically elderly patients in expensive hospital beds not being able to be released due to cuts in necessary social care provision (e.g. home visits to check on the former patient, giving medication, or even just checking the patient has all they need in terms of feeding and other basic care essentials)\xa0is mentioned, along with the practical difficulty of addressing it using the common-sense idea of utilising much cheaper\xa0spare capacity in care homes.', u'entity_id': 29077, u'annotation_id': 4831, u'tag_id': 92, u'entity_type': u'comment'}, {u'quote': u"I ever only saw one beggar. He was a physically disabled man, unable to stand, having to crawl\xa0through\xa0the streets. At different times I saw him receiving food from the small food stalls on the street.\nI had befriended\xa0a local woman, let's call her Babs,\xa0through a common friend and I asked her about this man. Babs\xa0immediately knew who I meant. She said that there were not many beggars and homeless people\xa0in Savannakhet, a city of 120,000 people and second largest city\xa0in Laos. There used to be many people asking for money on the streets a few years earlier.\xa0Most of them came from large, poor\xa0families outside the city. One or two family members would go to the city to beg and send some money back home. Recently, the local government chased those people away back to the rural areas.\nThe\xa0reasoning was\xa0that the families\xa0were able to sustain themselves growing crops on their small piece of land, so they should not come begging in the city. Responsibility to take care of each other rests\xa0on\xa0the family. This is the situation for most of the Lao: they can sustain themselves but they have almost nothing more and live in poverty. Begging in the city is one of the ways out.\nBabs said that now, there only remain a few homeless people\xa0who have mental or physical disabilities and no family to rely on. In other words, those who have no other options. The police condones them and they are usually helped by the community, like getting food from food vendors.\nBabs mentioned that there were plenty of mentally and physically disabled people\xa0due to a poor medical system, pointing out especially the issue of giving birth in rural areas. Most of them are cared for by their family.", u'entity_id': 29080, u'annotation_id': 4832, u'tag_id': 93, u'entity_type': u'comment'}, {u'quote': u'Belgian trauma therapists', u'entity_id': 6272, u'annotation_id': 12502, u'tag_id': 2619, u'entity_type': u'post'}, {u'quote': u'"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care\xa0(twitter link)', u'entity_id': 790, u'annotation_id': 4838, u'tag_id': 94, u'entity_type': u'post'}, {u'quote': u"For me, i'd rather free and alone. But i can also see the attraction of belonging. But not the coersion.", u'entity_id': 27819, u'annotation_id': 4837, u'tag_id': 94, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19442, u'annotation_id': 4836, u'tag_id': 94, u'entity_type': u'comment'}, {u'quote': u'As time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, "belittled" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn\'t spend much time on this project so my answer to my question might sound cheesy.\xa0\xa0I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that\xa0time to work out.', u'entity_id': 23723, u'annotation_id': 4840, u'tag_id': 95, u'entity_type': u'comment'}, {u'quote': u'Unfortunately this dichotomy between\xa0provider/\xa0receiver of services is still very common in the non-profit sector. Just look at how funding applications for initiatives supporting refugees are framed. It seems that the moment you define them as category in need- no matter the language variations, you have a problem already.\nCurious if our friends in Milano who are now doing many workshops to engage with groups in the city are seeing this kind of differentiation felt at the very level of individuals who are "in need" of care? Ping @zoescope @Alberto_Simonetti, as we were lately wondering how to frame discourse..', u'entity_id': 9249, u'annotation_id': 4839, u'tag_id': 95, u'entity_type': u'comment'}, {u'quote': u"I have linked to many of the UK BIDs and they have been incredibly supportive. Also, recently in Edinburgh there was the World Towns Leadership Summit, in which one of the organizers was BIDs Scotland along with IDA of Northern America. It was incredible to hear the stories of what some of the partnerships had indeed achieved in their communities. From Capetown to Copenhagen, it was quite an eye opener.\xa0\nI hope you don't mind if I reach out to you, with your experience and knowledge of the BIDs in your area in the future.", u'entity_id': 11534, u'annotation_id': 4843, u'tag_id': 96, u'entity_type': u'comment'}, {u'quote': u'I have much experiene of the BID structure myself as my home town of Bedford in the UK was one of the first to adopt the structure and my father was the Director of the Board for many years before standing down last year.\nFrom a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently\xa0demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.\nIt is much better for the BID groups to be politically autonomous and to save the time and energy of local politicians and civil servants. This way you get to use that time and energy on BID directed outcomes, rather than them spending it all in discussion and meetings. It really does help get things moving!\nI wish you all the best for you other initiatives too. Your aims are very laudable.', u'entity_id': 7852, u'annotation_id': 4842, u'tag_id': 96, u'entity_type': u'comment'}, {u'quote': u"I'm an Interior Architect, Business Woman, Mother and active citizen. I have been running my own Design business for the past 9 years ever since I have left the corporate hospitality world. I started with my company Design2Style in partnership with my Husband, designing residential & interiors and developing brand design for companies. Over time, my interest and knowledge of design thinking and strategy increased, gaining experience in projects and from attending various conferences on the subject, which resulted in moving forward, evolving personally and professionally. I launched Belgium Design Council, which applies design thinking on the project's infrastructural level. This allowed me to move from aesthetic design to applying design thinking processes in \u2018designing\u2019 communities.\nWe're working on several projects at the moment. I've got increasingly interested in Business Improvement District concept over the last couple of years, which existed since the 1960\u2019s/70\u2019s in the Northern America, and concentrated on socio-economical regeneration for business and communities as a whole. The combination of a geographical zone including businesses, community, people and the collaboration of those elements creating successful public, private and citizen partnerships, in order to enhance people's lives and environments. Creating sustainable socio/economic regeneration. BIDs and similar partnerships have been launched around the world - in Sweden, Scotland, Germany, England - and one of them is our non-profit organization of BIDs Belgium. We're also planning to launch BID EU in the near future, in order to create a platform for sharing best practices with each other and filter these down to ground level. I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts.\nWe have also been developing and presenting the general information and interactive sessions for the BIDs in Brussels. We invited architects, developers, retailers, freelancers and members of the communities and explained the concept, but also ask them for feedback. There has\xa0been positive feedback and some are really keen on implementing, but they need guidance - and we want to prepare and adapt the framework which has been shared by other BID countries, which would be useful and simplify the launching of BIDs across Belgium. The model works this way: by defining the geographical zone, having a collaborative approach to working together as a community, whilst addressing the issue that is of priority and defining the projects for that area. BIDs can be supported by a levy that business owners, citizens, and the municipality contributes to. Crowd-funding has also been used to support local projects. Some cities have it already in Belgium, albeit these are a slightly different models - Mechelen and Ghent for example. The BID is a non-profit organization, with a task force representation with an open source, collaborative and transparent approach and it needs to be inclusive of the Open Care element.\nI also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and\xa0is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend. \xa0Our son will be changing to a further\xa0specialised school closer to our\xa0home now. I have spoken\xa0with the principal\xa0and he is very interested some of the creative\xa0inclusive projects I have suggested,\xa0but the school has\xa0no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work.\nMy Husband and I are also heavily involved in another nonprofit organization in Brussels and volunteer at a local football club, with over 300 youth from various backgrounds. We also have a goal of making this youth more inclusive and open - both for children with special needs, but also for refugees, who get refused from other football clubs around the city for example. We will introduce the first refugee children into the club for the coming season, which we are very proud of, as we see this as part of the wider community work we are involved in.\nIt seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.\nThis is why we decided to be active citizens, to get involved in various initiatives we are working on, pulling in our network and knowledge base - and turn things around by, inspiring, collaborating and sharing information, including enlisting more volunteers from the football club to the BIDs projects, showing that non-hierarchical organisations welcome everyone. It's important to talk, share, bring people together, because it's part of the process of change - and this is where OpenCare comes as a partner.\nDo you design better communities yourself? Do you have experience in different projects that solve problems of local groups by mobilizing them and the resources available at hand? Or maybe you know of an interesting project that feeds into this challenge? Share your story by leaving a comment, or by submitting your own post here.", u'entity_id': 716, u'annotation_id': 4841, u'tag_id': 96, u'entity_type': u'post'}, {u'quote': u"So looking at your crowdfunding,\xa0people not only\xa0support, but actually\xa0fund scientific\xa0research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led?\nHow long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?", u'entity_id': 10213, u'annotation_id': 4846, u'tag_id': 97, u'entity_type': u'comment'}, {u'quote': u'About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.', u'entity_id': 523, u'annotation_id': 4845, u'tag_id': 97, u'entity_type': u'post'}, {u'quote': u"Hi @iffat_e_faria. More green, more forests are beneficial to our health in so many ways. Taking joy of caring of them as @Noemi points out, taking a walk in the forest, cleaner air, better soils, more stable climates, more biodiversity, ... The list goes on.\n\nIn Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader.\n\nFive seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here's the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:", u'entity_id': 24340, u'annotation_id': 11971, u'tag_id': 1965, u'entity_type': u'comment'}, {u'quote': u"Thank\xa0you for sharing\xa0Noemi, that's also quite an interesting approach. Biotech is still in the early stage, but it should be possible. What I am especially curious about is how we can cooperate with different actors on the controversial issues, like GMO. We don't pick any side, because we don't think there should be polarized\xa0sides: we\xa0want to tell a nuanced story, which is the hardest task of all. But as soon as you involve big biotech, concerned citizens might drop out and self-censor. The same could happen vice versa. Perhaps it is ideal to steer clear of the subject for a while, there are so many other interesting things to talk about anyway.\nI've not met @Rozina, but I saw her around on some events in Brussels.\xa0I believe she was talking about schools for children with special needs, if I am not mistaken. But perhaps the same holds true for standard schools, we will try and find out", u'entity_id': 18946, u'annotation_id': 4848, u'tag_id': 99, u'entity_type': u'comment'}, {u'quote': u"Reagent is a term\xa0used in chemistry to describe a process in which one determines a presence of a substance by sparking a chemical reaction with it.\nIn Ghent, ReaGent is a space opened by enthusiasts of bioengineering in order to spark interest and passion for natural sciences among the citizens of the city. And to prove that the increasing know-how will play a huge role in innovation and future of technology, also with a local focus.\nPeople are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future.\xa0The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it\u2019s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it.\nI have been involved in ReaGent since over a year. The space offers both paid and unpaid access and program - the privileged ones fund this way free classes for poorer children. Part of the funding comes also from the memberships, which guarantee access to the lab 2 days a week.\nPlaces like ReaGent spark creativity in sciences by working in an accessible, open and flexible manner. Their mission now is to give access to this type of education to the whole of Flanders, and extend their network by inviting for example designers to come and create biodegradable materials.\nAs OPENandchange allied, ReaGent would bring about the same qualities to the application: they would bring scientific education, which in turn would be used in innovation and hacking applicable in care.\nIf you have advice or\xa0another project which is relevant, let's discuss it here. A question to get the discussion going: what is the fairest way in the long term to\xa0fund\xa0education outside of, but\xa0as an addition to, the traditional state-funded system\xa0- from who\xa0and how?", u'entity_id': 715, u'annotation_id': 4847, u'tag_id': 99, u'entity_type': u'post'}, {u'quote': u'As a result of our conversations over the last weeks, we and the broader DIYbio community will help with collecting machinery for the lab in Cameroon like @thomasmboa envisions it.', u'entity_id': 38850, u'annotation_id': 11852, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'The issue is complicated and multifaceted, I would immediately give up any attempt at labelling the barriers as "ethical", "protectionism", or anything else... there are components of each of the above and more, and the problem is intractable if reduced.', u'entity_id': 38810, u'annotation_id': 11838, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.', u'entity_id': 37593, u'annotation_id': 11826, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'It will be nice to have more time to talk than the last time at Cern into the Biofabbing context. Your thinking is addressing most of the worries about what it is and what can be this movement that for years we were thinking and acting. Into my close environment as living at "autonomous" community Calafou and Pechblenda lab and being active at Hackteria network more for the needed than for entertainment.', u'entity_id': 38478, u'annotation_id': 11832, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'I am Thomas Herv\xe9 Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).', u'entity_id': 37182, u'annotation_id': 11763, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u'Transition dynamics\nThe projects I am involved in (ReaGent, Ekoli & Break it Down) are going through transition phases. This requires us to take a step back and deconstruct what we\u2019re doing. It comes at a good time when I\u2019m doing such in depth work with other, often similar projects for OpenVillage.\nWe break down many of the processes that we have, eg. logistics for running the lab space as a community, with the purpose of building new ones. This process unearths dynamics that would otherwise be harder to spot for the community, such as the difference between being an open lab and being a shared lab. And then what that means for being an open, shared lab.\nMid June we had a workshop with the ReaGent team to look closer at our strategy and implementation for the shared lab space. It was fruitful and is the first of several sessions this summer across our organisations to get everyone aligned. In our next location, the financial pressure from the rent will be higher. We need to prepare. Set up our business models and synergies between all organisations. Design the next iteration for resilience.\n\xa0\nIn July I\u2019m attending a Biohackathon in Waag in Amsterdam, where I\u2019ll meet many protagonists in citizen.open science & DIYbio. Over the next weeks, we\u2019re also moving into logistic planning for the sessions at the festival and picking up communication efforts.', u'entity_id': 6459, u'annotation_id': 4871, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u"I think a demo session would be nice and can tie in with more educational content. Finding a school should be doable, if it's on a Friday. Weekends can work as well, then you could involve an NGO working with underprivileged groups. Practically, what more would be needed for such a demo @albertorey ?\n@NiekD will also share his personal take on education as care online soon. @Damiano also mentioned his interest in education and linking it with biohacking. When the discussion gets going, we can see how we shape a session (or several) from this.\nMeanwhile I have been in contact with people on water quality, a response is on its way.", u'entity_id': 27447, u'annotation_id': 4870, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'Who wants to join us for the biohackathon? We can get 4-5 people together. You can reply in the thread here:\xa0https://edgeryders.eu/en/open-insulin-research-group/biohackathon-at-waag-society-8-9-july', u'entity_id': 7979, u'annotation_id': 4869, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'@Michielstock has met with Noel Carrascal to help out with molecular modelling\nAfter the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing\xa0a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with\xa0a broader goal in mind.\xa0At some point\xa0it may help the insulin research\xa0(or vice versa), but it is not the goal.\nThe biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here', u'entity_id': 31639, u'annotation_id': 4868, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'Apart from getting the device together, we can start thinking about what to do at the biohackathon in July. Federico shared some interesting techniques like Loop Mediated Isothermal Amplification\xa0(LAMP) and Recombinase Polymerase Amplification (RPA) that are convenient to use in microfluidics, as they are isothermal reactions. We already discussed culturing bacteria on the chip.\xa0We could\xa0add a detection step or\xa0try to do a transformation, or do\xa0cloning.', u'entity_id': 30405, u'annotation_id': 4867, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'Bio lab and bio space. Open to public. Developing Educational non-profit in the community to push science education to under resourced groups. Helping researchers and orgs to communicate better with each other and public. Generally interested in sustainable models for running a physical community space.\nFor OpenVillage he is curating and looking for people to introduce projects on citizen science and open science, starting with the OpenInsulin global team which he is coordinating in Eur', u'entity_id': 6360, u'annotation_id': 4866, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u"communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale\xa0groups working in distributed fashion\xa0to experiment with and produce other biologics.\nWe're very near to reaching our first milestone of producing and isolating proinsulin, after which we'll be redoubling our efforts to develop a simple, end-to-end protocol to produce insulin. We've had several collaborators join our effort in the meantime, including a group at ReaGent in Belgium, another at Biofoundry in Sydney, and another here with us in the Bay Area at Fair Access Medicines.", u'entity_id': 859, u'annotation_id': 4865, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u"Waag Society and Digi.bio are organising a biohackathon on July 8-9 in Amsterdam. They asked if we are up for joining with a team of 4-5 people. We will be able to experiment with the open source microfluidics chips Digi.bio has developed.\nThe event will be a mix of presentations and hands-on work, with a focus on the latter. Many experts in the field will be there. Waag Society itself is of course also worth a visit!\nThis is a good occassion to get some more input on the plans we have regarding microfluidics.\nWe can already go on the evening of the 7th to avoid early travels and to enjoy the\xa0evening in Amsterdam.\nAs we discussed in the meeting of June 7th, we could\xa0try to replicate some of the work we do with the plasmids on the chips.\nWho's up for joining? Any other ideas?", u'entity_id': 6388, u'annotation_id': 4864, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u'And drinks were had. Only short updates as not much happened in the last two weeks. We further planned the trip to Amsterdam for the biohackathon and discussed general things.\n\nWe can use the leftover iGem funds for buying consumables. This will get us going with the plasimids that are set to arrive soon\nWe have access to a Biosafety Level 2 lab in Ghent, yay!\n\nWe also asked ourselves: what is the legislation around\xa0genetic engineering in open sea? Could it be unregulated? A first short search on the internet did not deliver any results', u'entity_id': 8319, u'annotation_id': 4863, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'From talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities\u200a\u2014\u200awe all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. \nFinding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to \u2018citizen science\u2019 at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.', u'entity_id': 6427, u'annotation_id': 4862, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u'Hi @Rachel , nice to read your ideas!\nI think a micronucleus workshop would be cool :-). Off the top of my head in ReaGent we have a binocular lab microscope, some Foldscopes and\xa0some variations of this model (both with bought lenses and self-made ones). Plenty of glassware & staining products as well. What would you need exactly for the\xa0workshop?\nWe can also do a microbial analysis combined with the fly fishing demo by @albertorey . We also have the equipment and might as well when we are at a river!\nAnother proposal\xa0by @Nabeel_p was also related to public engagement and communicating science through art. How could be combine these insights?', u'entity_id': 16325, u'annotation_id': 4860, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'Hi!\nThe diybio.org group made this code in 2011, as far as I know. \xa0We have a handout for prospective members of Hackuarium\xa0that includes it too...\n\xa0Here it is:\nTransparency\nEmphasize transparency and the sharing of ideas, knowledge, data and results.\nSafety\nAdopt safe practices.\nOpen Access\nPromote citizen science and decentralized access to biotechnology.\nEducation\nHelp educate the public about biotechnology, its benefits and implications.\nModesty\nKnow you don\u2019t know everything.\nCommunity\nCarefully listen to any concerns and questions and respond honestly\nPeaceful Purposes\nBiotechnology must only be used for peaceful purposes.\nRespect\nRespect humans and all living systems.\nResponsibility\nRecognize the complexity and dynamics of living systems and our responsibility towards them.\nAccountability\nRemain accountable for your actions and for upholding this code.\nDIYbio code of ethics, Draft from the European Delegation, May 2011\xa0\n\xa0\nProbably there could be many versions of this out there now, of course!\nI should also note that DIT Research is more close to my heart (do it together!) than the original diybio... ciao for now,\nRachel', u'entity_id': 33818, u'annotation_id': 4859, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u"I thought I'd write a small update. In September 2016, we have launched a new nonprofit for education called Ekoli. Reasons for putting our educational activities in a new entity were better communication and keeping the biohacking legally seperate (translates into admin & cost advantages).\nIn retrospect, it was also good to assemble a new team around a new common goal. This fresh wind pushed us to where we are now, having reached hundreds of underpriviledged children & school children and poised to grow a lot in the new school year after the summer.\xa0\nDownsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent) \xa0time too thinly. Generally it was a good decision though.", u'entity_id': 24301, u'annotation_id': 4858, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u"Super interesting Damiano. We wrote a proposal for the same thing in December: install a DIYbio lab in a high school. We had a nice consortium of partners, but sadly it did not go through. I'd be very interested in reading the rest of the documents", u'entity_id': 18972, u'annotation_id': 4857, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'Hello @WinniePoncelet, good job, I hope to come in Gent soon to visit the biohacker space.\n@Noemi @alberto you might be interested in the work done by Eugenio Battaglia to bring low-cost biohacking-lab in every school, we tried to propose it to the Ministery of Education.\xa0\nHere you find part of the documents\xa0https://drive.google.com/file/d/0B3a6iTS9jqfCY242M0g2VUp4QUU/view?usp=sharing (if you want I can share the rest)\xa0\n\nIn general, I think biohacking have an enormous potential, for educational purpose, it\'s already very valid.\nI think the movement should be ready to take action to make aware of what could happen in few decades/years with genome editing and aging, etc. , that could be some unprecedented achievement but the risks that they could bridge economic inequality to biological inequality.\n\nI focussed on agriculture,\xa0I have created a project (never realized) that was called Openphenotyping, it was about democratic plant phenotyping ( http://www.thefreedictionary.com/Phenotyping ) and it aimed to give the power of biotechnology to small farmers\' cooperatives to maintain and exalt biodiversity, also, \xa0through genetic modification.\nThe idea about Openphenotyping it was based on the fact that genome data became cheap to get, while phenotypic data represent one of the main barriers to research.\xa0\nThe fact that Phenotyping is relatively simple could lead to a competitive advantage for bottom-up initiatives against big corporations, and more\xa0in general, could allow the involvement of a much wider group of people in research processes and their benefit.\nI never had the chance to realize the initiative, but I will be very glad to know more if there are similar actions taking off or another project that tries to tackle some major problems related to "traditional" biotech.', u'entity_id': 18966, u'annotation_id': 4856, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.\xa0\nIn the software world, we see this a lot. Turns out much software work is "packetizable": the whole is much\xa0more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think\xa0Wikipedia: it is so great because it spans human knowledge, but I can work\xa0on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.\xa0\n@dfko , is making\xa0open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?', u'entity_id': 19322, u'annotation_id': 4855, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that\xa0 get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)?\n\nIf I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and\xa0 3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based\xa0 research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?", u'entity_id': 23568, u'annotation_id': 4854, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u"I was wondering:\xa0which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally.\xa0The biohackerspace in Ghent, Belgium where I'm involved surely would be.", u'entity_id': 14446, u'annotation_id': 4853, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u"most six years ago I took a gap year and, I decided to spend some time away from Italy, in Australia. Back there I found a guy that told me about this movement: the biohacking. Basically, a bunch of tinkerers started to use their garages as biotechnology laboratories with the aim to make those biological technologies available to everyone.\nFrom that moment I started a path that led me to follow many movements and initiatives that are trying to create alternatives to existing power infrastructures.\nMy name is Damiano Avellino, I'm 24 years old. I\u2019m one of the founders of Fairbnb and of other non-profit initiatives that seek to create a more inclusive and fair society.", u'entity_id': 829, u'annotation_id': 4852, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u'Open source software and the hacker culture that makes it was a major inspiration for biohackers to organize as such. \u201cBiohacker\u201d derives from the term \u201chacker\u201d in the sense used in the communities of early pioneers of computing, where it\u2019s a term used to refer to people who seek to understand how things work on the inside, instead of just using products as a consumer. Hackers are people who seek to modify things to serve their own purposes, instead of just accepting them as being limited to their originally intended purposes. It\u2019s an approach that emphasizes the philosophical concepts of phronesis and techne, which describe an embodied, contextualized, practical approach to things, applied to science and technology. Biohackers are people who take a practical approach to understanding and engineering biological systems, and look beyond appearances and inside the black boxes of commercial products to understand the substance and true implications of things.', u'entity_id': 552, u'annotation_id': 4851, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u'Open Insulin is one of many projects at Counter Culture Labs, a biohacker space in Oakland, CA. Counter Culture Labs was founded around 2011-2012 by a group of hackers with diverse backgrounds and interests. Members joined us from Sudo Room, another hacker space in Oakland, and Biocurious, a biohacker space in Sunnyvale. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Eventually, the community we built in the hacker space reached a critical mass of knowledge and interest around the idea of starting to producing insulin with a manual protocol, but one designed to be simpler and less expensive than existing methods. We named the project \u201cOpen Insulin\u201d to reflect a commitment to make the results freely available to any interested party and publish our methods openly. The name was a deliberate reference to open source software.\nOpen source, as many readers may know from the software world, is the practice of making all information necessary to produce and modify a product publicly available along with the product itself. It started in software as an alternative to the practice of providing only machine-readable copies of programs, which can\u2019t be understood or practically changed by users of the software. Without access to human-readable code, users and other stakeholders were shut out of their own tools. Open source methods of production are relevant not just to aligning incentives and improving the economics of software development, but also to scientific reproducibility and transparency, and in both software and science, open source can enable more participation and progress than trying to hold secrets close. In medicine in general, and diabetes treatments in particular, I think it holds one of the keys to breaking through the barrier between promising research and a stagnant market of treatments available to patients, just as it made software much more efficient to produce and use and enabled a great deal more innovation than was otherwise possible.', u'entity_id': 552, u'annotation_id': 4850, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u'Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.\nOpen Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.\nCounter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now.\nAbout a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.\nThe general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.\nRight now we\u2019re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can\u2019t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers.\nProvided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.\nUltimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body\u2019s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet.\nAt the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we\u2019re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we\u2019re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow.\nMeanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it\u2019s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek.\nDo you have any projects in health, medicine, or biohacking that you\u2019d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you\u2019d like to get involved with? Leave a comment and let us know.', u'entity_id': 523, u'annotation_id': 4849, u'tag_id': 100, u'entity_type': u'post'}, {u'quote': u"Winnie was telling me that this is\xa0accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:\n\n\xa0you can demonstrate diy science and how it contributes to increasing health awareness and care\n\xa0you demonstrate its openness, how communities take it on board and learn, then teach others etc.", u'entity_id': 17617, u'annotation_id': 4861, u'tag_id': 100, u'entity_type': u'comment'}, {u'quote': u'Open Biolab has most things equipment/some consumables available to do the transformation, as well as storage. The option of getting an own -80\xb0C freezer (Wim knows of one) is not ideal right now - high electricity use and it\u2019s very big/heavy for just storing a few samples. It will be simpler to do it at a uni for now.', u'entity_id': 7979, u'annotation_id': 4877, u'tag_id': 101, u'entity_type': u'comment'}, {u'quote': u'Bio lab and bio space. Open to public. Developing Educational non-profit in the community to push science education to under resourced groups. Helping researchers and orgs to communicate better with each other and public. Generally interested in sustainable models for running a physical community space.\nFor OpenVillage he is curating and looking for people to introduce projects on citizen science and open science, starting with the OpenInsulin global team which he is coordinating in Europe.', u'entity_id': 6360, u'annotation_id': 4876, u'tag_id': 101, u'entity_type': u'post'}, {u'quote': u'We have access to a Biosafety Level 2 lab in Ghent, yay!', u'entity_id': 8319, u'annotation_id': 4875, u'tag_id': 101, u'entity_type': u'comment'}, {u'quote': u'ReaGent is an open biolab where anyone from any background can tinker with biology. We organize practical workshops for children from all backgrounds to get them in touch with biology in a fun way. We do this because the role of biological technologies will become increasingly bigger as we move towards a circular society. Education plays a fundamental role in allowing people to be a part of this process.', u'entity_id': 530, u'annotation_id': 4874, u'tag_id': 101, u'entity_type': u'post'}, {u'quote': u"Hi Noemi, thanks for that video. The instant sound of kombucha slime landing on that table blasting through my speakers made me laugh out loud during my morning coffee. An example of a workshop is a DNA Cluedo (or Clue?) game where children in group have to solve a murder using biochemical and forensic techniques. We haven't crossed any language borders yet, but hopefully we will in the future :). We're now going to start testing out in what way we can work together with schools. So far it seems like they have very limited means. We will try and make it work regardless, the way you mention might work. Thanks for the tips", u'entity_id': 17283, u'annotation_id': 4873, u'tag_id': 101, u'entity_type': u'comment'}, {u'quote': u'People are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future.\xa0The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it\u2019s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it.', u'entity_id': 715, u'annotation_id': 4872, u'tag_id': 101, u'entity_type': u'post'}, {u'quote': u'On 3: agreed to an extent. There is a lot of wickedness in the biotech industry. Research is very slow and expensive, almost as extreme as it gets. The dynamics do change at these extremes, I think, and that asks for a different strategy. To break through, accumulating small wins in an iterative way might not be ideal.\xa0Reaching a particular benchmark that actually matters big time (eg. the first open source production protocol for insulin) perhaps would be.', u'entity_id': 12977, u'annotation_id': 4879, u'tag_id': 102, u'entity_type': u'comment'}, {u'quote': u"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse\xa0effects in biotech\xa0are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The\xa0time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books).\nThis is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories\xa0from the news today:\xa0http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right.\nThe obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this.\xa0The potential of open medicine is there in the long term however.\xa0It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes.\nAnyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.", u'entity_id': 27807, u'annotation_id': 4878, u'tag_id': 102, u'entity_type': u'comment'}, {u'quote': u'psychiatrist. That psychiatrist whom I saw for 13 years admitted me to hospital.\n\nI suffer from Bipolar 1, meaning I suffer very high highs or mania, and very suicidal lows. When I get my highs medication seems to have very little effect on me. Instead it is a case of spending months in the safe confines of a hospital until the mania subsides. When I have my lows I get very suicidal and on two separate admissions for depression I have had to resort to Electroconvulsive Therapy (ECT) to treat my severe depression. There is quite a lot of controversy over ECT. I believe that it is a useful treatment of last resort. When a patient is in hospital and has been suicidal and catatonic with depression for many weeks with various medications being tried to no avail then I think ECT should be considered.', u'entity_id': 562, u'annotation_id': 4880, u'tag_id': 103, u'entity_type': u'post'}, {u'quote': u'Idea is about helping blind people about the outside world\u2019s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API\u2019s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)', u'entity_id': 770, u'annotation_id': 4886, u'tag_id': 104, u'entity_type': u'post'}, {u'quote': u'In our previous post, we concluded that nobody had really ideated SoundSight all alone\u2026 no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models.\nAt this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product.\nThe first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them.\nThe team worked hectically on Irene\u2019s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.\n\xa0\nLet\u2019s leave it again to Irene\u2019s recollection:\nIrene: \u201cHello Mario[1], we are here again\u2026 this time I promise you will be impressed\u201d\nMario: \u201cHi Irene, it\u2019s a pleasure\u2026 and rest assured, last time I was already impressed, although maybe not as you hoped for\u2026 with my friends we have been laughing a lot about your engineer\u2019s idea of a prototype!\u201d\nIrene: \u201cOh no, Mario\u2026 don\u2019t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things\u201d\nMario: \u201cDon\u2019t worry Irene, I have only told the story to one or two\u2026 hundreds of people\u2026 ahahah!\u201d\nIrene: \u201cDoh! \u2026ok Mario, then to pay you back, today\u2019s text will be extra tough!\u201d\nMario: \u201cI am ready for the challenge!\u201d\n\xa0\nIrene sets up the simulation\n\xa0\nIrene: \u201cOK Mario, it\u2019s ready. I would like to ask you to try the first round without me sharing with you any information\u2026 I want you to focus on your impressions only, tell me how it feels\u201d\nMario: \u201clet\u2019s start\u201d\n\xa0\nThe simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click\n\xa0\nMario: \u201cIndeed there have been a lot of improvements, it is smooth now\u2026 last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click\u2026 are you sure these are simulations?\u201d\nIrene: \u201cYes Mario\u2026 we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks\u2026 we are just not there yet\u2026 you are one of our very early testers, and I cannot thank you enough for that\u201d\nMario: \u201cDon\u2019t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user\u2019s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments\u2026 but I haven\u2019t been able to identify where I was.\u201d\nIrene: \u201cThat\u2019s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them\u2026 you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?\u201d\nMario: \u201cIt\u2019s difficult to tell you more from just this\u2026 maybe we can move to the next exercise?\u201d\nIrene: \u201cYes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks\u2026 try to guess what it would be\u201d\nJust a quick run of the new scenario on the simulator\nMario: \u201chmmm\u2026 the smoothness has improved a lot\u2026 but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?\u201d\nIrene: \u201cI had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral\u2026 now that I have told you, could you confirm it or would you still be doubtful?\u201d\nMario: \u201cLet me try to listen again\u201d\n\xa0\n\u2026the simulator runs again shortly\nMario: \u201cYes Irene, now that I know, it could well be\u2026 I had some doubts, with no context it could have been a theater or a large gym, \u2026\u201d\nIrene: \u201cIndeed\u2026 now I would like you to do a few exercises\u2026 I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features\u2026 later there will be a test\u2026\u201d\nMario: \u201cFor me or for the software?\u201d\nIrene: \u201cFor both, Mario, don\u2019t try to escape your responsibilities\u201d\nMario: \u201cAhahah\u201d\n\xa0\nThey run the training set\nMario: \u201cWell Irene, we will see how I perform later\u2026 but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users\u2026 it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn\u2019t add up\u201d\nIrene: \u201cYou are right. Together with the real-time acquisition of users\u2019 clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface\u2026 or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough\u201d\nMario: \u201cYou would need a lot of needles to offer a useful interface\u2026 you can try prototyping something quick maybe with Arduino\u2026 but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.\u201d\nIrene: \u201cWe will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional\u2026 and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break\u2026\u201d\nMario: \u201cWhat break? Are you not letting me off yet?\u201d\nIrene: \u201cMario, let\u2019s just take the test before the coffee\u2026 I will let you off then, for today\u201d\nMario: \u201cOk, ok\u2026 a no is not possible anyway, isn\u2019t it?\u201d\nIrene: \u201cIt\u2019s always possible, but I will insist with a smile\u201d\nThey run the tests\nIrene: \u201dif we compare today\u2019s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!\u201d\nMario: \u201cBut Irene, how can I be sure if I have truly learned? I mean\u2026 we should arrange tests where there are coupled with some sort of benchmark\u2026 maybe similar tests in real world, you could imagine a mobile lab to do so\u2026 or even just arrange competitions among users\u201d\nIrene: \u201cThat\u2019s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being\u2026 do you think your partner would like to try it out against you?\u201d\nMario: \u201cBut she sees\u2026\u201d\nIrene: \u201cit should not be an advantage, and I promise you I will not show her the screen\u201d\nThis is now a different story\u2026 but after being initially baffled, Mario\u2019s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill.\n1\xa0Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture\u2026', u'entity_id': 578, u'annotation_id': 4885, u'tag_id': 104, u'entity_type': u'post'}, {u'quote': u'\u201cI can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special\u2026 how wrong could I have been!', u'entity_id': 577, u'annotation_id': 4884, u'tag_id': 104, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 4883, u'tag_id': 104, u'entity_type': u'post'}, {u'quote': u'http://www.seva.org\nhas been working to save eyesight in Nepal for many years. \xa0SEVA was co-founded by Dr. Larry Brilliant, who co-founded The WELL. \xa0I don\'t know if they work directly with Dr. Ruit, but it would not surprise me.\nFrom the SEVA website, "Since 1978, Seva has worked with partners in Nepal to develop a network of eye care providers and services. Seva Nepal, a local Seva Foundation office, supports continuing medical education, professional training, and provides surgical equipment and supplies, all of which serve to increase the quality of patient care.\xa0\n\nAll aspects of Seva Nepal\u2019s programs serve to build the capacity of local hospitals to deliver high quality, sustainable eye care. By equipping our partners with the tools they need to provide quality, efficient services, Seva builds locally-run eye care programs that are self-sustaining within 5-10 years of establishment."', u'entity_id': 20294, u'annotation_id': 4882, u'tag_id': 104, u'entity_type': u'comment'}, {u'quote': u'The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world\u2019s biggest project aiming at removing cataract for the poorest:\xa0through\xa0a ten minute microsurgery with\xa0articial lens\xa0implantation.\nThe project is extraordinary and has been documented in media all over the world. My favorite aspects of it are:\n\n\nThe lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece.\n \n\nThe surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands;\n \n\nHis lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars)\n \n\nThe doctor himself has cured around 120.000 people\n \n\nBy funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others;\n \n\nIn Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150.\n \n\nThis simple idea turned out incredibly effective and is tested now in other countries.\nhttp://www.cureblindness.org/eye-on-the-world/press\nhttp://www.tilganga.org/', u'entity_id': 709, u'annotation_id': 4881, u'tag_id': 104, u'entity_type': u'post'}, {u'quote': u'Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of \u201cholding space\u201d for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began \u201cdeep-liking\u201d my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal \u2013 knowing how to approach someone in grief on social media or how to express grief on social media is not actually \u201ccommon sense\u201d. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.', u'entity_id': 548, u'annotation_id': 4887, u'tag_id': 105, u'entity_type': u'post'}, {u'quote': u"Thank you @Alberto, for commenting and reading.\xa0No, the rats did not take the tea. We injected the bioactive agents (the contents) of the leaves into the rats. Then we observed them with a glucometer. And yes, I think sipping the moringa tea would provide blood regulatory function. Because during digestion, this enters from the gut into the bloodstream, and that's where it serves this function. I have already conducted experiments on this with diabetic humans too (who take the tea), and indeed the moringa tea has very powerful blood regulatory effect.", u'entity_id': 11034, u'annotation_id': 4888, u'tag_id': 106, u'entity_type': u'comment'}, {u'quote': u'TICAH met this situation with interventions that emphasised embodied communication and the creative body. They invited those effected to walk a labyrinth together in a peace ceremony and organised body map workshops that brought together different survivors to share their stories. The body-mapping workshops use art skills to trace participants\u2019 bodies and then map elements of their life stories onto this body map: visual elements are added that stand for the individual\u2019s aims, what supports them, the traumas they have lived through and their strengths. These visual records are a way of introducing the details of what happened in captivity back into the community to be held by everyone. So the labyrinth walking and the body-mapping make the real lives, bodies and experiences of the victims a public experience and enable the wider community to listen to and appreciate how these survivors managed to live through painful and unbelievably challenging times.', u'entity_id': 553, u'annotation_id': 11972, u'tag_id': 1966, u'entity_type': u'post'}, {u'quote': u"You draw an outline of your body (real sized, or smaller) and then you connect personal experiences, traumas, memories etc to certain body areas by writing on them on the picture.\nFor example, if you suffered a physical trauma to your right arm because of a car crash\xa0you might write Car Crash on the right forearm. It's a nice way of visualising the experiences that make up your life. Although they are highly personal, they can also create anonymity because they are pictures, not stories.\xa0\nWe carry our scars around with us, but unless you tell people the story (relive the experience) we don't know the difference between the person who broke their arm falling down stairs when drunk and the person who experienced brutality or torture.", u'entity_id': 28469, u'annotation_id': 4890, u'tag_id': 1966, u'entity_type': u'comment'}, {u'quote': u"Predictably enough, given my day job, my bias is towards body-based practices, or at least forms of psychotherapy that incorporate some aspect of physical engagement - I don't know if @ybe already incorporates these ideas in her practice, and in any case other forms of psychotherapeutic intervention are also very effective.", u'entity_id': 13679, u'annotation_id': 4889, u'tag_id': 1966, u'entity_type': u'comment'}, {u'quote': u'Simplicity of invitation, creative expression, embodied shared experience, working and listening to others, ritual time and focus, the unexpected, all these feel like good leads for designing a transformative care network. TICAH\u2019s emphasis on shared humanity and that each person is a human being with a different story encourages survivors and perpetrators alike to stand strong in themselves, to understand the past and live a better day.\xa0 I think of post-conflict creative efforts like http://reflections.org.np/ that creatively depict the subjectivities of Nepali people in the aftermath of the earthquake. There is a courage in projects that present every person, even though they may have lived through horrendous circumstances, as a human being with a unique story and power.', u'entity_id': 553, u'annotation_id': 4892, u'tag_id': 108, u'entity_type': u'post'}, {u'quote': u"You draw an outline of your body (real sized, or smaller) and then you connect personal experiences, traumas, memories etc to certain body areas by writing on them on the picture.\nFor example, if you suffered a physical trauma to your right arm because of a car crash\xa0you might write Car Crash on the right forearm. It's a nice way of visualising the experiences that make up your life. Although they are highly personal, they can also create anonymity because they are pictures, not stories.\xa0\nWe carry our scars around with us, but unless you tell people the story (relive the experience) we don't know the difference between the person who broke their arm falling down stairs when drunk and the person who experienced brutality or torture.", u'entity_id': 28469, u'annotation_id': 4891, u'tag_id': 108, u'entity_type': u'comment'}, {u'quote': u'So what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?', u'entity_id': 23982, u'annotation_id': 4897, u'tag_id': 111, u'entity_type': u'comment'}, {u'quote': u'The fact that Phenotyping is relatively simple could lead to a competitive advantage for bottom-up initiatives against big corporations, and more\xa0in general, could allow the involvement of a much wider group of people in research processes and their benefit.', u'entity_id': 18966, u'annotation_id': 4896, u'tag_id': 111, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 4895, u'tag_id': 111, u'entity_type': u'post'}, {u'quote': u"Bottom-up initiatives follow the same reasoning to a large extent. Government is one of the obstacles to be overcome, because they're perceived as ingerently part of the problem, almost an external factor that is unchangeable. But they have to do it\xa0with less means,\xa0less people and less power (leading to the burnout problem).\xa0Additionally, the whole neo-liberal side\xa0will see these projects and initiators as 'one of them', because of the shared 'entrepreneurial activism'. For an outsider, the difference between both fades.", u'entity_id': 20946, u'annotation_id': 4894, u'tag_id': 111, u'entity_type': u'comment'}, {u'quote': u'self-organisation, communication and collaboration', u'entity_id': 39328, u'annotation_id': 11634, u'tag_id': 111, u'entity_type': u'post'}, {u'quote': u'SIDENOTE: Multiple times in the discussion a same metaphor that was introduced by Alkasem was used by the participants. He noted that our western society made us all \u2018boxpeople\u2019. He finds it so strange that we are all living next to each other, but that we aren\u2019t interacting better. We put old people in a home and (mentally) sick people in a closed environment. I found that metaphor really strong and something to use when we are trying to connect multiple organizations.', u'entity_id': 541, u'annotation_id': 4898, u'tag_id': 112, u'entity_type': u'post'}, {u'quote': u"Collaborations that have formed, and outcomes that have occured would be presented as digrams using the various logos of groups, on a timeline. Branding can be an effective language, shows diversity of collaborating groups through symbols/colour, and is also easy for the business sector and authoritive bodies to understand. It's also how I organise stuff in my head every few months, so I guess that could be a good next step for me.", u'entity_id': 24984, u'annotation_id': 4899, u'tag_id': 113, u'entity_type': u'comment'}, {u'quote': u'Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people\u2019s caring and collaborating capabilities and doing so, creating new forms of care-related communities.', u'entity_id': 832, u'annotation_id': 4900, u'tag_id': 114, u'entity_type': u'post'}, {u'quote': u'..is that it lowers the barriers to this type of knowledge. It\xa0is about learning\xa0and starts with conversations, not therapy, which sounds much heavier and almost like you have to be a "patient" or close to one\xa0to access it. Who wants to be a "patient"\xa0and can walk in confidently? Probably very few people, or not even those who need it the most.\xa0Even the word "trauma" is so heavy that I can see how a friendlier setup and human face can help break the ice. Don\'t know if it\'s a strict deontological choice, but you might want to try an experiment where you dont use the word at all in your communication (for example for an event), you\'d only use "pain that doesn\'t go away" or something..Then you explain the proper terminology while at it. Who knows, maybe you get even better results.\nThank you for working on this piece Ybe. Quick heads up: your link to the list of things we can help with does not work.. so waiting. With @Nadia and a little luck we might meet you in Greece in December!', u'entity_id': 8060, u'annotation_id': 4903, u'tag_id': 115, u'entity_type': u'comment'}, {u'quote': u"I don\u2019t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of \u2018self care\u2019: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, \u2026 It is long known that helping on this \u2018equal\u2019 level, is often more effective than any method or technique. It is also known that the relationship between \u2018therapist\u2019 and \u2018patient\u2019 is a major factor when it comes to healing. If we combine both, \u2018helping expertise\u2019 and \u2018being equal\u2019, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes \u2018us\u2019 helpers and \u2018them\u2019 traumatized people equal human beings, fellow human beings. It restores humanity.", u'entity_id': 795, u'annotation_id': 4902, u'tag_id': 115, u'entity_type': u'post'}, {u'quote': u'I think your story reflect what I am trying to say with my traumatour: that to be really helpful we should break down the walls between professionals\xa0 patients/clients. Instead we should sit together and share what we know and feel and can do to get better and stay well - as fellow human beings. Holding on to hope together is so much easier dan trying to do that on your own...', u'entity_id': 24011, u'annotation_id': 4901, u'tag_id': 115, u'entity_type': u'comment'}, {u'quote': u'@Michielstock has met with Noel Carrascal to help out with molecular modelling\nAfter the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing\xa0a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with\xa0a broader goal in mind.\xa0At some point\xa0it may help the insulin research\xa0(or vice versa), but it is not the goal.\nThe biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.', u'entity_id': 31639, u'annotation_id': 4906, u'tag_id': 116, u'entity_type': u'comment'}, {u'quote': u'Is anyone up for doing one of these tasks?', u'entity_id': 29392, u'annotation_id': 4905, u'tag_id': 116, u'entity_type': u'comment'}, {u'quote': u'it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).', u'entity_id': 26938, u'annotation_id': 4910, u'tag_id': 117, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 764, u'annotation_id': 4909, u'tag_id': 117, u'entity_type': u'post'}, {u'quote': u'Sharing this:the ibreastexam, low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.\xa0\nThis is the full article:\xa0\nUE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.\nThe test is painless and radiation free, and takes less than 5 minutes to complete. The device can be used by any doctor or health worker and the results are available at the point-of-care.ibreastexam\xa0assesses differences in tissue elasticity between malignant and non-cancerous breast tissue, and its tactile sensor measures shear stiffness and tissue compression when applied to the skin.\nA clinical study\xa0conducted in India reported that the test maintained high specificity and outperformed an expert clinician who conducted a conventional clinical breast examination. All malignant lesions were identified by the device, while the clinician failed to identify a non-palpable lesion.\nUE Lifesciences won the 2016 Hitlab world cup at the Hitlab Innovators Summit in New York for their ibreastexam\xa0system. This prize is awarded to a healthcare startup deemed to have made an outstanding contribution in improving the delivery and accessibility of healthcare worldwide.\nMatthew Campisi, CTO of UE LifeSciences made the following statement:\n\u201cWe are truly grateful to have won the HITLAB World Cup and to be part of such a terrific program. As we continue to scale our ibreastexam\xa0product offering, collaboration with partners like HITLAB will help create awareness and establish key partnerships.\u201d\nVideo:\xa0https://vimeo.com/75510451', u'entity_id': 803, u'annotation_id': 4908, u'tag_id': 117, u'entity_type': u'post'}, {u'quote': u'Breast Cancer Recognizer\nIdea is about detecting the breast with a prototype which have a skin recognition and accelometre to map the breast. It is necessary because every women and men needs to check their breasts once a month. And the techniques of detecting the breast cancer early is so complicated. First with 2 fingers you should message your arm pit. With 3 fingers you should rub down your breast in a circle to the niple... We can optimize this with a prototype.\nWhat are the main aspects of this project?\nOur goal is to detect the cancer in early stage. Our perspective is \u201cit can happen to anyone\u201d It is an awareness and caring project. So we encourage all the people to look after theirselves with our prototype and catch the cancer before it is too late.\nHow to?\nWe should show supervisors the research and prototype of Yemen University\u2019s to think about more simple ways to make this prototype happen. Because their system is so complex and difficult to built with only Arduinos.\nhttp://www.wseas.us/e-library/conferences/2014/Lisbon/BIOENV/BIOENV-20.pdf', u'entity_id': 774, u'annotation_id': 4907, u'tag_id': 117, u'entity_type': u'post'}, {u'quote': u"It's a grand idea and project. \xa0Your writeup says it started in 2012. \xa0How has it been going since then? \xa0Has it got those men to talking with each other more? \xa0I am sure it does, even if it is about the beermaking. \xa0That by itself would show it as a success since those guys aren't so alone anymore..", u'entity_id': 10198, u'annotation_id': 4912, u'tag_id': 118, u'entity_type': u'comment'}, {u'quote': u'WHAT?\nA social enterprise beer brewing club.\nWHY?\nSt. James\u2019 Hospital,\xa0Dublin,\xa0commissioned a service design project\xa0in search of\xa0\xa0a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing\xa0the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.\xa0\nThe hospital is based\xa0in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City\'s walls \u2013 lands united with the city, but still keeping their own jurisdiction (hence "liberties"). The area\'s history is still very relevant to the health of its residents.\nBeing outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world\'s largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties\xa0is a city neighbourhood of opportunities and innovation, but its history -\xa0positive and negative -\xa0pervades. Although having undergone much urban regeneration as well as gentrification,\xa0the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing\xa0in the Liberties today.\xa0\nOn researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals.\nThe\xa0project takes its inspiration from the highly successful Men\u2019s Sheds mental health initiative whose\xa0motto is, \u201cmen don\u2019t talk face to face, they talk shoulder to shoulder.\u201d\nHOW?\nThe\xa0brewing club for men over fifty\xa0in the locality \u2013 where they create a low percentage beer brewed by locals,\xa0for locals \u2013\xa0harnesses existing local\xa0skill sets of the hundreds of Guinness factory retirees.\nThe brewing club, "Sl\xe1inte", takes it name from the Irish word for "cheers", also meaning "health". The aim of the club is to\xa0encourage\xa0more responsible drinking through\xa0appreciation of the brewing process\xa0as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin\u2019s Active Age Conference 2012.\nWith Ireland\'s craft beer market having hit\xa0\u20ac59 million in 2016 (up form \u20ac40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club "Sl\xe1inte" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health.\nUSER JOURNEY', u'entity_id': 841, u'annotation_id': 4911, u'tag_id': 118, u'entity_type': u'post'}, {u'quote': u"This wins the award for bleakest B-word take i've read this weak.", u'entity_id': 21744, u'annotation_id': 4914, u'tag_id': 119, u'entity_type': u'comment'}, {u'quote': u"Meanwhile, of course, I have studiously avoided the implications of the B-word. However, as Britain dusts off its application to join the Third World, it'd be a very positive thing for us to build some bridges with our friends from the future. Any suggestions?", u'entity_id': 19837, u'annotation_id': 4913, u'tag_id': 119, u'entity_type': u'comment'}, {u'quote': u'The Milan consortium meeting taught us that bringing the offline debate online is hard. So far, we have followed\xa0two different approaches:\n\n\n\n\n\xa0ScImpulse, WeMake and City of Milano focus on an engaging offline experience for participants. Conveners take notes, photos etc. They then editorialize them and upload them onto the platform.\n\n\nEdgeryders focus on offering people with good stories help for them to put them on the platform. Workshops are organized not by Edgeryders itself (though we do take part), but by active community members. The same also provide most of the help.\xa0\n\n\n\nBoth methods are hard. Both have drawbacks.\n\nThe first method is mostly failing. It is difficult to make sense of notes taken during the meeting. I had this experience during "Taking care", where I volunteered to take notes with Cristina. Afterwards, I could interpret my notes, but not hers (though we were using the same \xa0Google Doc! ). I imagine the opposite was true for her. Many notes never make it online. Those that do take the form of a report: "A said this, B said that". The community tends not to engage with this type of format.\xa0\n\nThe second method has given better results.\xa0\xa0Still,\xa0it discourages people who are not good communicators in writing, face language barriers etc.\xa0\n\nHow to move forward? The Milan meeting gave us two promising leads.\n\nThe first one was offered by @costantino and @alessandrocontini . They pointed out that the mechanics of makers collaboration is not so social. You go to the forum, ask a question, get a pointer, solve the problem and move on. It may be difficult to track it through an online forum.\n\nThe second one results from\xa0something interesting that happened during "Taking care". This: people in the Bordeaux group at some point felt their contribution was unnecessary and possibly unwelcome. They withdrew from the workshop and moved to a different room. They kept working on opencare, but in the form of writing code to look at the conversation.\xa0\n\nThis resonates with an Edgeryders\xa0conversation thread\xa0that predates opencare.\xa0It says this: the "meeting"\xa0or "assembly" format claims to be inclusive, but in fact it is not. Instead, it rewards extrovert, confident, even narcissistic personalities. Introverts don\'t like to speak in public,\xa0certainly not without thinking things through. So they never speak. This issue has come to the fore in the hacker community, where many skilled developers identify as intros. Intros like online, where they can take time to think things through, and where they do not have to interrupt others to claim space.\xa0See for example\xa0this great comment\xa0by @trythis\xa0and the thread that comes with it. As a result, offline spaces are exclusionary. They do not know it...\xa0because they exclude\xa0the people who never speak up.\xa0\n\nThe post-it workshop format has a\xa0second potential problem. It has no space for\xa0contributions\xa0in\xa0forms other than the speech (as Cicero describes in\xa0De Oratore). The role of facilitators is to "standardize" contributions. Some people (like @Noemi in "Taking care") feel that this negates serendipity and predetermines results.\n\nIf this is true, a lot of design-based methods of engagement have a serious flaw. What\'s worse, an\xa0unacknowledged\xa0one. Given their popularity, this is serious.\n\nSo, I propose we\xa0"go deep", doing research and producing one or more papers on:\n\n\n\n\n\nAn ethnography of makers collaboration. How important is the space? How important is StackOverflow or similar? What constitues "good" collaboration (Alessandro: "the less interactive and more efficient, the better")?\xa0\n\n\n\nA model of the interface between online and\xa0offline collaboration. We promised to build this anyway in the proposal.\n\n\n\nA critique of the post-it workshop as a technique for collective intelligence.\xa0\n\n\n\nAll of this should, in my opinion, have a design perspective. I propose that @Ezio_Manzini coordinates the activities and writes one or two papers under items 2 and 3.\xa0ER would be happy to support this.\xa0And I would love to see WeMake and ScImpulse appoint an ethnographer to look into item 1.\xa0\n\nThoughts?', u'entity_id': 6069, u'annotation_id': 11973, u'tag_id': 1967, u'entity_type': u'post'}, {u'quote': u'Through this special edition of residency we are trying to create an active and participatory link between the online and offline collaboration.\xa0On one hand online collaboration is a great experience: you can get inspiration by reading stories, learning from all around the world experiences, finding technical documentation, forking and contributing to different projects.\xa0On the other hand, the live (aka "offline") experience (working in a makerspace / fablab) will add some other things:', u'entity_id': 6206, u'annotation_id': 4921, u'tag_id': 1967, u'entity_type': u'post'}, {u'quote': u'will start from Alberto\u2019s post last two lines:\xa0\xa0if considered useful, I would be happy to wrote something on\xa0\u201cBuilding gateways between online and offline engagement\u201d\xa0(I am not sure to understand which activities should I coordinate but, I am sure, some explanations will follow.\nHere few first thoughts/feedbacks on the Alberto\u2019s post (more will follow).\nPremise 1:\xa0if the Milano\xa0consortium meeting taught participants that \u201cbringing the offline debate online is hard\u201d\xa0and that there are at least, \u201ctwo different approaches\u201d, it means that this meeting and workshop have been successful (as a matter of fact, at least of what the workshop was concerned, its goal was exactly to trigger a conversation on this point).\xa0\xa0\nPremise 2:\xa0I understand that the OpenCare research asks for promoting on-line discussions on the issue of open care and, then, measuring, representing them as graphs and discussing these results.\xa0\xa0NB:\xa0writing\xa0OpenCare\xa0I refer to\xa0this specific research\xa0\u2013 writing\xa0open care, I intend the issue of open caring activities in general (as I did in previous posts).\n1.\xa0Alberto is right saying that the two different approaches he indicates emerged in the workshop conversations.\xa0\xa0But, in my view, these two approaches are of quite different nature, and cannot be proposed as polarized answers to the same question.\nIn fact, in general terms, the issue of care can be the subject of a wide range of conversations:\n\n(A) some conversations aim at solving specific problems (we can call them \u201cvertical conversations\u201d, generating \u201cvertical projects\u201d);\n(B) other conversations aim at creating environments\xa0\xa0where other, vertical conversations can emerge and be enhanced (we can call them \u201chorizontal conversations\u201d, generating \u201chorizontal projects\u201d).\n\n2.\xa0In this framework, I would rephrase the two approaches emerged in the workshop, and the related questions, in this way:\nApproach (A)\n\nopencare issue: (A.1): how to deal with, and possibly solve, specific care-related issues in an open way (for what regards both processes and results).\nopencare issue: (A.2) how much of this open result-oriented activity can be done on-line and, therefore, how much measurable conversations can be generated.\n\nApproach (B)\n\n\nopencare issue (B.1): how to engage in useful discussions on-line people who are interested/active in care-related issues.\n \nopencare issue: (B.2) how these on-line conversations can be triggered and supported and, finally, how much measurable conversations can be generated.\n\nIn my opinion, both (A) and (B) are relevant and should be considered, for the sake of the OpenCare research, the focus has to be on the point 2 (A.2 and B.2).\nNB but\xa0\xa0it must be observed that there would be no need to have (B) if \u2013at a given point - it would not generate (A)\n3.\xa0I think that, for the sake of both open care and OpenCare, we should have a third level o in our questions, that is:\n\nA.3/B.3 what are the advantages, in terms of care giving, of having rich on-line conversations like these A.2 and B.2 ones? How to make them more effective in practical terms and more capable to create a new culture of care?', u'entity_id': 19944, u'annotation_id': 4920, u'tag_id': 1967, u'entity_type': u'comment'}, {u'quote': u'Storytelling is also what I argued for, to Costantino and Alessandro in Milano: someone that translates what makers dont have the time into an accurate entry about their work. This is in less citizen journalism and engaging documentation that goes beyond note taking. While your\xa0citizen journalism idea is another way of adding a personal voice to the online conversation, the requirement for a structured research like OpenCare is that it needs to capture more viewpoints of more people who are in an offline environment. So a storyteller would bring their own, and incorporating\xa0some\xa0other points. What about the rest of the points which in our data strategy need to be attributed to\xa0distinct\xa0users?\nSo what I recommended was a storyteller that plays the interviewer at the event, in a similar way that Natalia interviewed people on skype in OpenandChange and posted their stories in their name and language.\xa0\nMy assumption is that almost anyone, including a technical person, would be able to articulate even half baked ideas about how they work if asked pertinent questions over a friendly, informal conversation.\n@Alberto I especially like point 2) modeling online-offline. Sign me up for that.', u'entity_id': 17100, u'annotation_id': 4919, u'tag_id': 1967, u'entity_type': u'comment'}, {u'quote': u"Hey,\xa0\nI read a peace lately , in french, about bringing back the 'journalisme flaneur', a person between a tourist (in the broader sence of the word)\xa0and note taker.\xa0\n\nThe way that person looks at an event is different, he or she is trying to give a sence to what he or she is seeing at the moment while moving between the conversations, it's a less objective note taking, but a richer experience for the reader i think.\xa0\nAnd to link it with the offline , i think we need the same kind of person, a storyteller more then a speaker. Somebody that make a story live through his experiences. The term 'conteur' in french is the best word to describe that.", u'entity_id': 14343, u'annotation_id': 4918, u'tag_id': 1967, u'entity_type': u'comment'}, {u'quote': u't LOTE4 and LOTE5 we used the concept of "community journalists", semi-organized note-takers. It worked like this:\n\nPeople volunteered for the Documentation Team (LOTEs are "no spectators event", you have to volunteer for something to get a ticket).\xa0\nA team leader would set up Hackpads or other repositories for notes. Important: these need to support real-time collaborative editing, so a wiki like you have on wikimedia or edgeryders will not work.\nThe team would have its own briefing on the morning of the first day. People would sign up for the different sessions, trying to cover them all. They would also receive some format indications. A format I personally used is attributed first person quotes. Example:\n\nBEN \u2013 I went through a serious burnout period two years ago. Something that seemed to help was temporarily deactivate my Facebook account, because it took away the anxiety from being constantly poked and drawn back to interacting with others. \xa0\n\nIn session, everyone would be encouraged to help with note-taking, but the documentation ream members took the lead. That made it easy for people less confident with note-taking to chip in maybe just a little, adding some points here and there or even just correcting typos.\nAfter the session, everyone was encouraged to go to the hackpad and make corrections as needed. If my point of view was misrepresented, I could correct for it. If you don\'t correct, it means you are OK with it ("open").\n\nI imagine a documentation team could be guided to produce notes that make more sense from an ethnographer\'s point of view.\xa0\nNotice that this is NOT storytelling, nor journalisme flaneur... though those are valuable too. First person narrative are preserved, at least when the community journalist do their\xa0job well.', u'entity_id': 10953, u'annotation_id': 4917, u'tag_id': 1967, u'entity_type': u'comment'}, {u'quote': u"There is still an important space for note takers and people who try to capture the detail of what hapens and is said, but this is attached to a narrative or story that engages the audience.\nWith regards finding ways of bringing intros into offline conversations, i'm not sure if there is a comfortable and efficient way of creating a solution withour being overly prescriptive about how an event or discussion is structured. One could pre-organise a series of questions that you want to answer and post them in a digital space so that whilst the discussion happens people can aso engage online to think of answers. But i worry that you start to dictate the flow of conversation too much in the offline world. It's a very difficult path to tread.", u'entity_id': 7056, u'annotation_id': 4916, u'tag_id': 1967, u'entity_type': u'comment'}, {u'quote': u"I was stuck by some of the thoughts in the first half around creating content from discussions and events. Is the perhaps an area where an overlap with the citizen journalism scene may yield results. People are invited to participate in the event as a 'journalist' (distinct from a note taker), the objective is the try to capture the essence of the event, the connections between people and ideas etc (I'm thinking of the posts from @Yannick \xa0at Re:Publica -\xa0https://edgeryders.eu/en/blog/republica-what-i-learned-about-cities-as-open-systems-political)", u'entity_id': 7056, u'annotation_id': 4915, u'tag_id': 1967, u'entity_type': u'comment'}, {u'quote': u'- it looks like our work here in Glasgow has quite a bit in common with your work in Access Space and Makers although we\u2019ve not quite gone digital yet. I agree that publicly-funded activity is limited in a number of ways and we\u2019ve been similarly burned in partnerships in the past. Our organisation has survived a number of cuts and financial challenges and nearly didn\u2019t make it after our EU employability funding came to an end after 7 years in 2012 (though I personally find the employability agenda deeply problematic). We started building a number of diverse income streams after that to create greater financial stability for the future. These have grown to become our trading subsidiary and we are trying to integrate the learning and development work we do with enterprise activities.', u'entity_id': 23520, u'annotation_id': 4924, u'tag_id': 121, u'entity_type': u'comment'}, {u'quote': u'Whoa, funding cuts due to being \'too successful" sounds like a familiar story - edgeryders at the end of our Council of Europe journey, could have gone for longer if incentives were better aligned, but in the end it might be better like this: an independent spinoff is probably an even better story. If you have blogged somewhere about the details of the affair, or the\xa0promising results,\xa0I\'d be interested in reading.', u'entity_id': 17052, u'annotation_id': 4923, u'tag_id': 121, u'entity_type': u'comment'}, {u'quote': u"We (Access Space) were a minor partner, receiving less than 5% of the project budget - yet one of our clients, who we helped to prototype a key product, has created more jobs than the WHOLE PROGRAMME'S OBJECTIVE. How were we thanked for this? We had our budget cut.", u'entity_id': 14151, u'annotation_id': 4922, u'tag_id': 121, u'entity_type': u'comment'}, {u'quote': u"So great to meet you. If you are based in CT, then please do reach out I'd love to meet with you and consider a conversation in person. I agree with you with regards to relaying information beyond academia and forging collaborations between academia and larger/broader audiences. This has been the preemptive step to the current project and various talks I've had with various institutions.", u'entity_id': 33824, u'annotation_id': 4926, u'tag_id': 122, u'entity_type': u'comment'}, {u'quote': u'the moment I am trying to build bridges between the academic world and the larger audience, via video and photography. More specifically, trying to portrait the people behind the scientific numbers in a creative and\xa0emotionally touching way.', u'entity_id': 33814, u'annotation_id': 4925, u'tag_id': 122, u'entity_type': u'comment'}, {u'quote': u"We are nomads, troubles makers, philosophers, witches, technoshamans, from all over the world, but also activists, hackers, economist, entrepreneurs, ethnologists, Pirate radio hosts, artists, performers, biohackers, feminists, engineers, community builders, medical doctors, academics, urbanists and scientists/wizards of all colors and continent. A subtle mix of individuals >> for once NOT ONLY TALKING about the fake sharing economy and how do we make money in these transitional times or how silicon valley is such a great model for the world to copy, or how technologies and transhumanists are going to save the world.... it's important to notice that we are not in 2000 anymore because our world have become pretty dystopic now...we need other stories and incentives, I think Edgeryders is onto something and it took me some times to realise...seeing all these beautifull people was refreshing...I was not borred", u'entity_id': 38808, u'annotation_id': 11760, u'tag_id': 123, u'entity_type': u'post'}, {u'quote': u'I am guessing the diveristy of the people in there is what keeps the space unique and going, you know what is the problem in most of the MENA region countries? is that at some point it was a mess and having diffent people in one room would only cause a lot of troubles... however now things are getting better, at least for Tunisia\n              \n  \n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 38305, u'annotation_id': 11719, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'3. A healthy mix of working, living, and the space in between In the Nieklitz group, I found a surprising combination of brain meets the heart meets the hands. It is not a hackerspace with living quarters, nor is it a hippie commune. Or if it is any of them, it escaped me, as I was talking to such diverse people - designers, artists, cooks, planners and highly skilled builders. The space reflects that: as part of the package one can try three different kinds of showers \u2013 the inside shower, the outside shower, and the love shower', u'entity_id': 36387, u'annotation_id': 11708, u'tag_id': 123, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 4947, u'tag_id': 123, u'entity_type': u'post'}, {u'quote': u'A friend of mine, expat living in Cluj, has\xa0similar questions to yours and he\'s starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\xa0events branded as such -\xa0"you should spend time with strangers, it\'s healthy and fun".\nIt\'s nice because it starts with a personal burning point and doesn\'t pretent it will find answers. Needing to', u'entity_id': 7822, u'annotation_id': 4946, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?', u'entity_id': 830, u'annotation_id': 4945, u'tag_id': 123, u'entity_type': u'post'}, {u'quote': u'FACT 1: Bovisa is a meltin\u2019pot.\nPeople from many nationalities live in this neighborhood and many exotic shops can be found walking in the streets. Here, people can find at a short distance Chinese takaways, Italian pizzerias, Japanese all-you-can-eats and Indian restaurants (just to name a few).\nUnfortunately, the wide geographical network does not convert into effective connections.\nThat\u2019s why we asked ourselves:\nHow may we foster cultural exchange and engagement among different nationalities?', u'entity_id': 26067, u'annotation_id': 4944, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20209, u'annotation_id': 4943, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 4942, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7850, u'annotation_id': 4941, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a\xa0form to win even when you lose.', u'entity_id': 507, u'annotation_id': 4940, u'tag_id': 123, u'entity_type': u'post'}, {u'quote': u'I found that out when discussing things with the people who help out at a refugee center close to there. There ought to be some mutual interest in some of the activities... apparently it is a new thing - so there is probably a lot of learning for everyone involved.', u'entity_id': 30610, u'annotation_id': 4938, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 26043, u'annotation_id': 4937, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u', if as you say didn\u2019t know each other and had no common identity or belonging, how did you find each other and make the\xa0decision together?', u'entity_id': 21004, u'annotation_id': 4936, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'.but the chance here is get support of expereinces (good and bad) from families who knows what can mean to live like this without a religous/political/frienship\xa0previous shared background.', u'entity_id': 17693, u'annotation_id': 4935, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u"These moments also show you how angry people are. Refugees stop you in their shelters, or on the paths around the camp. Inter-community tensions seeps out through small cracks. The walls and fences of the Calais port don\u2019t discriminate between nations. So neither does the camp. Afghanis rub up against Iranians, Indians, Sudanese and Syrians. Some communities are better established on the camp. Some manage their resources and people better than others. Some communities have established 'leaders' who act as a lynchpin for fellow countrymen. I met a young Indian refugee who was angry there was no Indian community leader. I explained to him he was the first refugee from India i had met on the camp. He was de facto the community leader for his nation.", u'entity_id': 536, u'annotation_id': 4934, u'tag_id': 123, u'entity_type': u'post'}, {u'quote': u'All those divisions are totally unnatural if you ask me, in fact it is beneficial for human species to mix as much as possible, greater mixture of genes leads naturally to better results and greater mixture of cultures/difference of experiences is of immense value.', u'entity_id': 26012, u'annotation_id': 4933, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'The only way to truly build bridges between communities is to \xa0have them work together, eat together, talk and exchange knowledge about each other. (even then you\xa0might get an incredible reaction like "hey Mohamed is such a nice guy...FOR a Morrocan", so one stops regarding him as a foreigner but \xa0he stays an exception, he is UNLIKE those others\xa0:).', u'entity_id': 26012, u'annotation_id': 4932, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'.But it helps me escape the bubble I live in, inhabited by people that agree with each other. Though, I am still pretty far from understanding why they think what they think.', u'entity_id': 24385, u'annotation_id': 4931, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'We can only hope that the people bringing back the good stories will be more credible and cooler than those bringing back the bad ones. This way, we can win over more of the new generation \u2013 aim at cultural hegemony, in other words.', u'entity_id': 21716, u'annotation_id': 4930, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u"It is also a challenge to create this environment for meetings that would not feel like encountering something exotic and different due to some voyerist instincts - I used to work in italy for an NGO and we organised human libraries there, but even though it is some sort of step for people to have a chat with migrants from Ghana and Bangladesh, to meet transvestites and gay community members, it felt a little bit like a show. These people run into each other on the streets, you see them every day - why so many of us decide not to interact, discover and understand them? It's a puzzle.", u'entity_id': 19778, u'annotation_id': 4929, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'And so, with a small group of Milanese from all over the world we decided to organize a party to celebrate the diversity of our country and our city. We called it Vuka, which means \u201cArise!\u201d or \u201cAwaken!\u201d in the Zulu language; and we are going to throw it tomorrow, Tuesday March 22nd at 10 p.m. sharp, at Casa del Pane di Corso di Porta Venezia 63 (map). We designed it as a club night for dancing to the sound of the most cutting-edge clubs of Lagos, Karachi and Barletta [a small town in the south of Italy]; and where the Milanese of any origin are welcome and respected. Join Medhin (Milano\u2013Asmara), Nadia (Stockholm), Dan (Johannesburg), Davide (Verona-Sydney-Osaka) and myself to dance away to the world\u2019s beat in a space where everyone\u2019s welcome, and our many differences of living out Milano power up the party.', u'entity_id': 14055, u'annotation_id': 4928, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'This was to let people know that (1) no matter where they came from, they would not be the only foreign-looking people in the room, and (2) no, this was not a party of the Eritrean community, or the Peruvian community; it was a party of the Milanese community, just some Milanese happened to be of Eritrean or Peruvian background.', u'entity_id': 14055, u'annotation_id': 4927, u'tag_id': 123, u'entity_type': u'comment'}, {u'quote': u'The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.', u'entity_id': 828, u'annotation_id': 4948, u'tag_id': 124, u'entity_type': u'post'}, {u'quote': u"They built a lot of infrastructure: spaces for tractor mechanics, woodwork, preservation spaces. Weekly newspaper, radio, website zad.nadir.org, welcome houses, internal telecom network. No police, no justice. Conflict mediation group. Autonomous health care. Some people don't have health insurance, no legal papers, or access to cars or phone to do paperwork in the city. Fugitives, people traumatized by the medic system.", u'entity_id': 38787, u'annotation_id': 11883, u'tag_id': 125, u'entity_type': u'post'}, {u'quote': u'To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.', u'entity_id': 855, u'annotation_id': 4950, u'tag_id': 125, u'entity_type': u'post'}, {u'quote': u"Hello all,\nI propose we work towards\xa0a session to make the most out of experiences in creating conditions and infrastructure for open care: open and collaborative policy making being one aspect of it, and I'm sure there's more. Hopefully we have the journey of Milano to start with, but\xa0I can see it playing out as a live debate with other progressive civil servants\xa0and community members whom\xa0we could invite based on a preliminary outline.\xa0\nI invited Lucia Scopelliti and Gehan for a first stab at the concept, but I could use some input from @Alberto and @Tino_Sanandaji too. - does anyone come to mind that we could invite who understands policy and political opportunities and constraints from city side or community side?", u'entity_id': 7471, u'annotation_id': 4949, u'tag_id': 125, u'entity_type': u'comment'}, {u'quote': u'1. Reaching out to fitting partners in a strategic way. Securing the resources to get started involved 3 questions: What\u2019s the topic? Who\u2019s around to partner up with? Where does the money come from? It could be that the OpenVillage solves 2) and 3) by being hosted temporarily in a community whose values are aligned, which has the space for us: could be an industrial park, an eco-village, a farmland and so on.', u'entity_id': 36387, u'annotation_id': 11705, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'John: underlying theme would be just asking them what are ways to form alliances without a pre-defined outcome. What is the commitment when people do decide to come/live together?', u'entity_id': 6415, u'annotation_id': 4978, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory,\xa0collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.", u'entity_id': 33730, u'annotation_id': 4977, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Caf\xe9s and Eventspaces be a part of our project. So for example we lead a participant to a caf\xe9 and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience.\nSo our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment.\nMilan/Newcomer', u'entity_id': 699, u'annotation_id': 4976, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'in my opinion you have touched a key point. When you work in a public administration the relation between technicians and politicians are crucial, in particular if you want to do something, if you want really realize new and innovative projects. In many situations for example the fact that a politician is engaged in a project became the only possibility to realize the projects.', u'entity_id': 29961, u'annotation_id': 4975, u'tag_id': 1968, u'entity_type': u'comment'}, {u'quote': u"2) because of the 'amplification' factor - you put a lot of energy in connecting different initiatives and projects and that is what we need to create general and global change", u'entity_id': 24568, u'annotation_id': 4974, u'tag_id': 1968, u'entity_type': u'comment'}, {u'quote': u'What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.', u'entity_id': 15996, u'annotation_id': 4973, u'tag_id': 1968, u'entity_type': u'comment'}, {u'quote': u'Strong solidarity networks already exist within the cities, in which teams of lawyers, doctors, translators and networks of families offering hospitality in their homes, are offering voluntary support and practical solutions, whenever needed.', u'entity_id': 792, u'annotation_id': 4972, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'Hi\n\nSome time ago, just before the OpenCare Project\'s start, I had tried to involve the LEDHA (http://www.ledha.it/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of "WeHandU". I believe that the proposal to Rune can actively engage these people.\nOf course I agree on the role of WeMake as a reference point and work space! : D', u'entity_id': 29072, u'annotation_id': 4971, u'tag_id': 1968, u'entity_type': u'comment'}, {u'quote': u'Volunteers playing with children; refugees and security joking around and everybody is eating at the same table. There is no hint of the provider/receiver-dilemma that you would witness in other establishments.\xa0We\u2019ve been warmly welcomed by the people and the relationships have gradually grown more personal since our first visit.', u'entity_id': 703, u'annotation_id': 4970, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'You find yourself under the same strain as the refugees. You get emotionally attached to their quest. You want them to succeed at making it across the Channel. But when they leave the camp to try you feel a gut-wrenching fear for them. You\u2019ve heard too many bad stories \u2013 about the armed police; about the fascist skinheads that patrol around the ferry ports; and refrigerated lorries. Whilst I was there I met two people I later found out fell under the wheels of a moving lorry, or became trapped in airless lorry containers; suffocating to death.', u'entity_id': 536, u'annotation_id': 4969, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 4968, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'ate. Not many of us know how it is to lead a refugee\u2019s life. How many of us have been discriminated against? For me I was born in Germany, but for a moment I thought well all the refugee circus that is going on has nothing to do with me and I thought it is the responsibility of larger organisations like NGos and the Government to deal with...I asked myself what capacity do I realistically have to help. Then I realised that as someone born in Germany, I walk around the street I hear people discriminating against Asians. And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but \xa0to help others and how this is deeply human at its core.\u201d', u'entity_id': 494, u'annotation_id': 4967, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'\u201cWe were mostly talking about first time experience of meeting some guys from syria. How can we start meeting people on a high level and not relationship that we are giving, and they are receiving donations. That we are both receiving and giving care.\u201d', u'entity_id': 494, u'annotation_id': 4966, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'Also we talked about how social relations to certain people are necessary for providing some kinds of care. And how to solve challenges of providing care for people we don\u2019t already know. You touch people physically (as we did in the opening session today) and it changes relationship immediately e.g. free hugs in public spaces: This changes something very fast. Especially in regards to refugee topic\u2026.Before helping there should be a contact, a communication with people before offering help whether you know they need or not.\u201d', u'entity_id': 494, u'annotation_id': 4965, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u"I'd love to learn more about your process and they way you initially reached out to the refugees. How did you get them to trust you and your service? Have you had any scary moments?", u'entity_id': 8654, u'annotation_id': 4964, u'tag_id': 1968, u'entity_type': u'comment'}, {u'quote': u'allieviate the problems between the local residents and the refugees on the Camp.', u'entity_id': 8654, u'annotation_id': 4963, u'tag_id': 1968, u'entity_type': u'comment'}, {u'quote': u'Providing care is providing empowerment for you and the other, helping build steps to autonomy.', u'entity_id': 5405, u'annotation_id': 4953, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'Going from the personal and going global to create\xa0\n\n\n\n Common ground (everywhere)\n\n\n\n\n Connection \u2192 Empathy', u'entity_id': 5405, u'annotation_id': 4954, u'tag_id': 1968, u'entity_type': u'post'}, {u'quote': u'I fully recognize myself -maybe a year back or so - in this picture. The advice I\'ve been given is to learn first\xa0 to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the "professional" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can\'t do it alone, and shouldn\'t. So the challenge is finding those like minded communities which Alberto mentions\xa0and dreaming up\xa0solutions to make it better for more people. If you know of good projects do recommend, I\'m very interested.\nThis talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it already', u'entity_id': 16075, u'annotation_id': 4982, u'tag_id': 127, u'entity_type': u'comment'}, {u'quote': u"I was and I am a part of that. And it strikes me that this kind of neoliberal thinking of \u201eyour life (and your success/failure) is your responsibility\u201c leads us sometimes to very harsh assumptions about ourselves and our peers.\nI can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case).\nAgainst this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does \u201ereal\u201c self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?\xa0\nI think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own.\nHow can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?", u'entity_id': 666, u'annotation_id': 4981, u'tag_id': 127, u'entity_type': u'post'}, {u'quote': u"My friend Denis Ngala at\xa0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\xa0health and cultural knowledge was telling me about the work that was being done in Kenya\xa0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\xa0he was communicating\xa0was that recovery was not the problem of the victim\xa0of torture\xa0alone, but that it was the\xa0community's task. They were working\xa0to educate the community around how to support the individual live beyond\xa0what they had lived through.", u'entity_id': 16456, u'annotation_id': 4980, u'tag_id': 127, u'entity_type': u'comment'}, {u'quote': u'Disease becomes individualized as \u201chealth', u'entity_id': 521, u'annotation_id': 4979, u'tag_id': 127, u'entity_type': u'post'}, {u'quote': u'I completely agree with your point of view. The political process (and media) focus on high-level strategies, but the greatest impact reforms would come from reforming the govt\'s operating system: quite simply, the affordances of people therein. Example: my sister works for an Italian municipality called Modena. In a drive to contain costs, some genius passed an internal regulation that employees travelling on business ("missions", as they are known in the public sector) need an authorization from the highest political level (giunta\xa0in Italian, which means the mayor and her close collaborators). This is such a hassle that in 99.9% of the cases managers renounce. Employees do not get to go to conferences. As a result, over time the whole workforce becomes isolated and its skillset depreciates and withers.\xa0\nChanging this does not require a strategy. A workforce that stays up to date would help any mayor, be she conservative or progressive. It does not require changing the law, either. The city council could simply vote a resolution allocating a modest budget that each employee can use to go to conferences and events they are interested in. This would have a massive impact, in my opinion. Maybe @Franca has an idea of how these decisions are made (or, in the case of Modena, not made).', u'entity_id': 30444, u'annotation_id': 4983, u'tag_id': 128, u'entity_type': u'comment'}, {u'quote': u"Downsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent) \xa0time too thinly. Generally it was a good decision though.", u'entity_id': 24301, u'annotation_id': 4992, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'Definitely think the time is ripe for new approaches, and also that a new willingness to try these is developing on the part of CCGs, healthcare trusts and local councils. Hopefully this will extend to national government, and they will allow local solutions to develop from the ground up. They are doing so in other health sectors, so there is hope. The CQC - given its very specific mandate and structure - may be another issue! But we can but try!', u'entity_id': 31537, u'annotation_id': 4991, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'Shows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.', u'entity_id': 29077, u'annotation_id': 4990, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'There is good reason for the regulatory framework, but the overhead for both\xa0parties (regulatory body and care institution) has become increasingly high and ever-changing, as with many top-down bureaucratic systems. (In the UK the body has gone through some changes after criticism regarding its efficacy , but it was formed from good intentions to stop care providers simply taking the money and "housing" the elderly or needy. There have been issues with maltreatment, theft, poor care, etc., just as there has in other social care areas, so some standards need to be set and monitoring carried out by a third party.', u'entity_id': 27817, u'annotation_id': 4989, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'I completely agree with your point of view. The political process (and media) focus on high-level strategies, but the greatest impact reforms would come from reforming the govt\'s operating system: quite simply, the affordances of people therein. Example: my sister works for an Italian municipality called Modena. In a drive to contain costs, some genius passed an internal regulation that employees travelling on business ("missions", as they are known in the public sector) need an authorization from the highest political level (giunta\xa0in Italian, which means the mayor and her close collaborators). This is such a hassle that in 99.9% of the cases managers renounce. Employees do not get to go to conferences. As a result, over time the whole workforce becomes isolated and its skillset depreciates and withers.\xa0\nChanging this does not require a strategy. A workforce that stays up to date would help any mayor, be she conservative or progressive. It does not require changing the law, either. The city council could simply vote a resolution allocating a modest budget that each employee can use to go to conferences and events they are interested in. This would have a massive impact, in my opinion. Maybe @Franca has an idea of how these decisions are made (or, in the case of Modena, not made).', u'entity_id': 30444, u'annotation_id': 4988, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'These words are the preface for my MBA thesis for which I had to interact with Greek officials -and hence got a first hand experience of the stagnant and chaotic ways of its bureaucracy.', u'entity_id': 559, u'annotation_id': 4987, u'tag_id': 129, u'entity_type': u'post'}, {u'quote': u"2 months is an extremely long time (2 weeks would be more usual). I won't bore you with the details, but essentially, acupuncturists are licensed at the local level in the UK alongside tattooists and body piercers (which have far greater risks of injury, blood-borne contamination, etc, and are, clearly, not any kind of healthcare) - and are thus entirely at the mercy of whatever inappropriate regulations the district council chooses to impose.", u'entity_id': 15329, u'annotation_id': 4986, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.', u'entity_id': 11945, u'annotation_id': 4985, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'95 % of the time you wait, pay tickets, try to get the right documents and wait for someone to (re)-type (using only the indexfinger) your anagraphical details (already electronically registered).', u'entity_id': 11945, u'annotation_id': 4984, u'tag_id': 129, u'entity_type': u'comment'}, {u'quote': u'Without national and/or international support, I feel tired and not sure that I will continue.', u'entity_id': 37182, u'annotation_id': 11822, u'tag_id': 131, u'entity_type': u'post'}, {u'quote': u"what I've taken from it also relates to the point about burn out. The space between chaos and order is what to cultivate to innovate. But we don't what to expend our energy reinventing the wheel. When we have found stuff we want to maintain - shift it a little to the right - find routines and rythms - sustain it. Like a bike - if its working you want to maintain it. You don't want to be designing new components constantly.\xa0\nThis is also a high octane space, it can be fast. We need to enter it to create new and innovative stuff but it is also exhausting.\xa0\nHow does that land?", u'entity_id': 19042, u'annotation_id': 5008, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.\xa0\n\nI think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?\n\n\nhttps://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.", u'entity_id': 19695, u'annotation_id': 5007, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u"I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the hype of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better.\nHow do we help people find the 'affliction' they have?", u'entity_id': 16932, u'annotation_id': 5006, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u'Fortunately, there are many things you can do to minimize and cope with stress and learn how to avoid a burnou', u'entity_id': 6293, u'annotation_id': 5005, u'tag_id': 131, u'entity_type': u'post'}, {u'quote': u"I do not have nearly your experience around care, so I'll defer to your judgment as to people's emotional needs. We started looking into care beccause, frankly, it keeps getting in the way. We\xa0are always trying to build something (an online community, a consulting business, a space for life and work... ). Building is hard, and normally underpaid because no one wants to pay for the costs of coordination and the risk-taking phase when you are building, but the thing you are building is not yielding its expected benefit because it's not finished. So people keep burning out, or having to take long breaks, or otherwise dropping the ball. That affects everyone else, is unfair on the tougher people who keep grinding it with less support, and fragilises everything we do.", u'entity_id': 24900, u'annotation_id': 5004, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u"I'm curious to know how the informal forums to share the 'tough stuff' are going since you posted this? Are people finding this is effective in managing work pace/load to reduce burnout?", u'entity_id': 23537, u'annotation_id': 5003, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u'Excellent piece @marcoclausen\xa0. It resonates with other stories and opinion I have heard, especially in the context on the unMonastery: many so-called social innovation initiatives (including, er, Edgeryders itself) are constantly at risk of burning out the (relatively)\xa0few people who pull\xa0most of the weight.\xa0\nNoemi above seems to endorse governance as a way to mitigate friction. My point of view is that governance often is an attention sink, and could potentially make burnout worse. This is why we are so interested in do-ocracy as a way of life: it has low overhead.\xa0\nOn the other hand, I could not agree more on collective learning. Our own version of that is an emphasis on documentation, so that people have a shared, written, searchable and evolving\xa0knowledge base. I think this is working quite well for us.', u'entity_id': 16817, u'annotation_id': 5002, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u'One main finding made by field researchers about burn out is that one of the main factors that leads people to burn out is "ethical suffering" (litteral translation of the original expression in French "souffrance \xe9thique") and this before workload.\nWhat does that mean ? Stress often comes from a conflict of values between prescribed work and "real" work, "real" in the sense of\xa0what really has to be done in a correct way.\nA large amount of professionals who get burnt out couldn\'t live anymore with the contradiction between what is asked and what should really be done. And I don\'t speak about\xa0ethics from ideological point of view. Just the tension between what is asked and what true professionals believe should be done (eg : social workers in big institutions, engineers in industrial companies, nurses in hospitals,...). The fact that there\xa0is no place anymore for true\xa0dialogue,\xa0exchanges and co-construction around their own practices worsened the situation.\nSo bringing "real\' work in the center of the operations\xa0by giving back the floor to those who act is a way that is currently implemented in a few organizations to significantly reduce the risk of burn out. By organizations, I mean not-for-profit, for-profit or public organizations. None of them is immune to this illness...especially the not-for-profit ones like NGOs.\nAnd this is without mentioning the ethical conflicts that workers can have between their own values and those shown withing the organizations they work for. And this is another (big) story.', u'entity_id': 15056, u'annotation_id': 5000, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u'single energies are often burn out or depressed by being alone or istitutionalised or politiced....here i see a cognitive breakthru...', u'entity_id': 16165, u'annotation_id': 4999, u'tag_id': 131, u'entity_type': u'comment'}, {u'quote': u'Most of the volunteers gave up, burned out or feeling unable to help. Meanwhile the main responsible for this failure get paid.', u'entity_id': 550, u'annotation_id': 4998, u'tag_id': 131, u'entity_type': u'post'}, {u'quote': u'Over time, this situation can result in what you might call an \u201eactivism-burnout\u201c. When this happens, physical, mental, and social damages are far too often just seen as a personal or biographical drama. These individual burn-outs are likely to be accompanied by a weakening or even a collapse of the organizations and initiatives that are often carried by the engagement of single individuals. The disintegration can lead to a situation where an organization loses knowledge, expertise, networks, and spirit.', u'entity_id': 507, u'annotation_id': 5001, u'tag_id': 131, u'entity_type': u'post'}, {u'quote': u'Woodbine. \xa0@yannick i think it is really important how you combine the idea of space with the idea of care. \xa0Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself. \xa0Then with the ever increasing rent, you become more and more attached to "work" or the struggle to compile a bunch of part time jobs together. \xa0Hence the ubiquitious greeting in the city is the "I\'m so busy, just really busy" idea, that once said is usually completely understood to be a chronic state. \xa0But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments. \xa0To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city. \xa0Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other. \xa0In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven\'t felt in the city. \xa0As one of our comrades said, "we left the capital of the world, and in this little town, our world just got so much bigger." \xa0\nExcited to continue this conversation and see the work you all are doing! \xa0Be well.', u'entity_id': 27815, u'annotation_id': 5009, u'tag_id': 132, u'entity_type': u'comment'}, {u'quote': u"*\xa0What you say about \u201abypassing\u2019 is actually the reason for hacking -\xa0for opencare. Once you certify your product is \u201afrozen\u2019. Yes it\u2019s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https://edgeryders.eu/en/fes-for-foot-drop). You can't meet individual requirements because youll lose certification.", u'entity_id': 33426, u'annotation_id': 5012, u'tag_id': 133, u'entity_type': u'comment'}, {u'quote': u'Me, Mayor (lol)\u2026I am Cameroonian and 34 years old. I don\u2019t want to expose the political environment of  my country here. But for a few notes, our President has spent 35 years in power (older than me) ; officially multipartism exists, but the President party is like the unique ; be Mayor means join this Party. And frankly, I am not sure that I will feel comfortable in this system. That is why I work directly with the community through advice and education and my philosophy is that local developement can be ensured only directly with/and inside the community. To support my action I have created in 2010 this school (legal) http://www.zikulumarie-claire.com/, with like 250 students every year. In this school I am doing formal education (nursery and primary) like that, I am training our future leader. I am doing informal and long life education through workshops and seminars, to empower people. I am also doing hygiene sensibilisation, with my mother, who is a retired nurse, we used to run this course : EVA (Education \xe0 la Vie et \xe0 l\u2019Amour), for sexual hygiene. @noemi  I have too much to tell, but through these actions, I feel my impact more tangible and authentic than to be mayor under this system. Perhaps one day, if the system change.', u'entity_id': 37591, u'annotation_id': 11817, u'tag_id': 1921, u'entity_type': u'comment'}, {u'quote': u'I am Thomas Herv\xe9 Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).', u'entity_id': 37182, u'annotation_id': 11767, u'tag_id': 1921, u'entity_type': u'post'}, {u'quote': u'The group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.\xa0 Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 \u20ac to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers.', u'entity_id': 672, u'annotation_id': 5013, u'tag_id': 134, u'entity_type': u'post'}, {u'quote': u'Dandelion "Pissenlit" roots for cure cacer, Yes it\'s possible and without fees!!\n\n\xa0There are many different types of cancer any people get killed by it. It\'s enough we have found the cure for many of them ( prostate, intestine, lungs ,...)\n\nMany people aboard have been heal by this roots when they heard about it, they stop using chimiotherapy ( chimiotherapy = traitement used for having a long day of living, is not enough efficient!!! The bad effect of this treatment is not his non efficiency but also killing the healthy cells, even if he kill the cancer cells inside body.!!! From this treatment there are some bad effect like, appetiteless, loss of weight, weakness of antibody, ...)\xa0\n\nActually, 7 people here in Madagascar have been heal by this treatment when they heard about it, and follow the instructions. It\'s \xa0a close friend of mine who have been sick by "liver and intestine" cacer. He was up to follow chimiotherapy \xa0treatment so I told him to follow this natural treatment \xa0first before he decided to spend \xa0money on chimiotherapy. When I heard about this plant from Canadian friend, we decided to use it.\xa0\n\nHe was so happy when he gets cured after 1 week \xa0of treatment, when he decided to drink infusion from dandelion\'s root. Doctors doesn\'t find any clue of cancer on him. Maybe the phase of his cacer was primary and it\'s was easy to cure. So my conscience is restless when I heard that there are many people who suffer, dead from cancer "it\'s like non assistance of people in danger". I decided to share it with you.\xa0\n\n-THIS IS THE YOU NEED TO FOLLOW.\xa0\n\n1# You need to collect dandelion on a place where cars doesn\'t barely ride.\n\n2# non chemical insecticides or related haven\'t been sprayed on the soil where you collect it.\xa0\n\n-PREPARATION\xa0\n\nBoil 1 liter of top water, when it\'s still boiling, ad 100 grams of \xa0dandelion roots. \xa0Leave it boiling \xa0for 10 minutes ( never more never less than 10mn. It\'s has been calculate that "active elements" goes out at this moment. \xa0If it\'s more than that, it\'s will kill those active elements. \xa0When it\'s done let it get cold. This is your "drinking water for one day" the better moment for drinking much is before breakfast and dinner, also drinkable in middle time. Do it for 20 days and stop for 10 days. Keep do it again from the beginning as a cycle of one month (20 plus 10 days.)\xa0\n\nIf everything has been followed step by step in one week, we can find the changes ; inside pain goes out, \xa0patient will find appetite, this is the major factor of this treatment and it\'s make a big different between it and chimiotherapy.\xa0\n\nIf I understand and correct me if I\'m wrong!! chimiotherapy kills cancerous cells but also healthy cells. Patient get weak, lost appetite and doesn\'t have no much time for living, \xa0It\'s a kind of catalyst inside body.\xa0\n\nBut this dandelion\'s \xa0roots hunt and kill all cancerous cells inside body. \xa0After you recognize that patient is completely cured, all we have to do is care about wound healing leave by the cancer inside the body. We can keep doing it by natural method using garlic. \xa0Take one glass of hot water, \xa0scratch 3 or 4 peaces of garlic and put it inside the glass of hot water. \xa0Leave it for one night and drink it before breakfast, \xa0keep do it until its gone, \xa0or you can still buy some medecines in drug store if you want to heal \xa0wound leaved by cancer.\n\n\xa0I hope that everyone can find a way to cure and fight cancer on his own natural or chimical.\n\nIf you have any questions about this, any suggestions or critics please don\'t hesitate to write bellow\xa0\n\nDear friends Edgeryders, I wish an Happy and successful new year to each every one of you.', u'entity_id': 805, u'annotation_id': 11975, u'tag_id': 135, u'entity_type': u'post'}, {u'quote': u'It all began with three words. "You have cancer."The most dreadful words anyone can hear. Denise Sliepen and Carry Hendrix heard those words.', u'entity_id': 35903, u'annotation_id': 11593, u'tag_id': 135, u'entity_type': u'post'}, {u'quote': u'and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).', u'entity_id': 26938, u'annotation_id': 5021, u'tag_id': 135, u'entity_type': u'comment'}, {u'quote': u"I am Sabina Ulubeanu, a 36 years old mother who also like to describe herself as \u201e just a composer\u201d.\nIn the autumn of 2009, at 30,\xa0I suddenly began to feel sick: very weak, short of breath and I became yellow. My daughter was 7, and my son was 2. I was still breastfeeding and thought I was just tired and stressed out.\nWhat came next was an avalanche of\xa0investigations and meetings with doctors form many\xa0hospitals. After ruling out all sorts of terrible diseases and trying different treatments with no success, I went to Vienna where my condition was confirmed: Autoimmune Hemolytic Anemia.\xa0The newest drug for AIHA (Rituximab) \xa0was still not approved in Romania for this rare disease, so I basically moved to Vienna where thet gave it to me, with no positive outcome, and\xa0finally I had my spleen removed and got well.\nIt happened in \xa0March 2012.\nIn November 2012 I was again in Vienna for artistic reasons (and the usual check-up). This is when I read for the first time about the Network of Cytostatics. Everything was familiar to me: the oldest pharmacy in Vienna, the office above Mariahilferstr, but mostly, the struggle to regain one's health....\nIt was too soon for me to get involved, tha trauma was too recent.\n\xa0But in February 2013, a good friend, Simona Tache, shared on Facebook a status about needing someone going to Bucharest from Vienna.\n\xa0It clicked something inside me and I responded.\xa0\nWhat came next was overwhelming.\n\xa0Yes, I travelled\xa0home with medicine, calmly taking them through security and bringing them to Valeriu, the taxi driver that distributed them to the ones in need.\xa0More important was the fact that doing a simple thing, an easy gesture, meant helping someone's health and fighting a system that seemed not to care about the people. Everyone I talked to about the network felt the same: it is the least we can do!\n\xa0I truly believe people have the need to do good, to offer, to help each other.\nThe Network was a way of getting people together for a good purpose. I think it is the main reason it worked so well.\nIt responded the needs of others, but also our own need to give (time/ help/ encouragement).\nMy own personal gain, though, was tremendous. Not only you feel good helping others, but I became very good friends with Vlad Voiculescu, the initiator if the Network, supporting each other in many other so called impossible projects or just knowing we are there at a click or phone call away.\nI got involved because I knew what it means to be helpless against a disease and I will remain involved for as long as I will live, because this Network might not be needed now for cancer drugs, but it created a gathering of great souls that will be for sure needed for many other aspects of our society that need deep and profound healing.", u'entity_id': 698, u'annotation_id': 5020, u'tag_id': 135, u'entity_type': u'post'}, {u'quote': u"Thank you for your comment. You are right\xa0by saying that there are many ideas on healthy food and it's very difficult to find evidence for recommended daily intake of various vitamines. Your suggestion to an OpenCare challenge to gather all data on diets etc is indeed also interesting. At this moment for us this scope would be too wide. We want to focus on the group of cancer patients, while we know that besides the battle of their illness they also struggle to gain the right information. As we mentioned in our reply to Noemi's response, we realise the challenge that it's extremely important to ensure a reliable and relevant source of information for this particular group.", u'entity_id': 25187, u'annotation_id': 5019, u'tag_id': 135, u'entity_type': u'comment'}, {u'quote': u'Hi Pavlos,\nThank you very much for taking the time to reply to our initiative!\nWe agree that a varied diet is of big importance to any of us (not only cancer-patients). Can you provide us with more information/sources of research concerning the variety that you are referring to?\xa0\nA core aspect that needs to be considered specifically when talking about "anti-cancer" nutrition is that carbs and sugar should be avoided or reduced to a minimum because they "feed" cancer cells. What we are trying to say with this goes hand in hand with our comment on Noemi\'s post: to come across as a reliable and relevant source of information, the platform needs to state very explicitly what it is focusing on concerning nutrition, still at one point you have to choose a certain framework of aspects which build the basis of, in our case, the platform. No one can ensure a 100% holistic approach, but you can already get a lot further by having this intention. In the end research today might state that milk (just as an example) is bad for us and tomorrow another research might state the opposite. Its all about the framework that you define and the beliefs you formulate as a basis.', u'entity_id': 22262, u'annotation_id': 5018, u'tag_id': 135, u'entity_type': u'comment'}, {u'quote': u'In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising.\nAt home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape?\nThrough the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase).\nThe information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight.\nCurrently there are all kinds of \u2018food fanatics\u2019 and \u2018health hypes\u2019. We are convinced that healthy food should not be a trend. We don\u2019t want to focus on trends or hypes; our focus lies at informing people about healthy food and \u201cback to basic\u201d. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don\u2019t have enough time to guide a patient in the best way and many dieticians follow the \u2018old\u2019 rules and are promoting the medical food of the pharmaceutics industry.\nWe want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu\u2019s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy.\nNext to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.\nFiguring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects.\nChallenge\n(Customized) advice serving cancer patients during treatment (chemo, radiation,\u2026) to ensure optimal nutrition and exercise.\n\nfocusing on natural instead of artificially produced ingredients\nemphasizing the importance of regular and moderately intensive exercise.\n\nChannels\nShort-term: online (info and community)\nLong-term: face to face (workshops on two main subjects)\nActivities:\n\ndevelop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc.,\ncontact points in the Netherlands on sports coaches to contact for guidance,\nset up sports projects and readings about healthy food and sports for cancer patients,\ncreate communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don\u2019t have a partner.\n\nType of community involved\nCommunity consists of cancer patients (no age restrictions or type of cancer)\nSolution proposed; effect on users life?\nEnsure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.\n\xa0\nHow is it open?\nIt is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)\n\xa0\nHow does it \u2018care\u2019?\nThis platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects \u201chealthy nutrition\u201d and \u201cexercise\u201d. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.', u'entity_id': 711, u'annotation_id': 5017, u'tag_id': 135, u'entity_type': u'post'}, {u'quote': u'The whole System in itself acted like a cancer: remissions and relapses.', u'entity_id': 517, u'annotation_id': 5016, u'tag_id': 135, u'entity_type': u'post'}, {u'quote': u"This story of mine only wanted to come out through an interview carried out online by Noemi. Hopefully it gives you a peek inside the very personal experience of being part of a sort of grand thing \u2013 a network of people becoming active in the healthcare provision chain and caring for each other despite not having met. \xa0\n\xa0\nNoemi: Introduce us to the time when the cytostatics network came about. Was someone ill able or unable to access treatment from healthcare providers? How did they go by?\nSabina: It was the fall of 2009 when it all started for me: the dizziness, the fatigue, trouble breathing, walking, doing\xa0 basically anything. In October, I just put it on my crazy life style: mother of two, finishing the PhD, teaching at the Music University.\n\xa0In November it was clear something else was going on. So I went to a private lab- the thought of a state hospital was too scary- and had a blood work done. Except it did not work the usual way: the results could not be read due to a strange characteristic of the sample.\nI knew it was a bad sign, so I turned to my adoptive grandmother, dr. Mirjam Bercovici. She figured it out in minutes, wrote me a recommendation letter and sent me to a real hospital. Autoimmune Hemolytic Anemia \u2013 a very rare blood disease- was confirmed and three years of fighting it in Romania and Austria followed.\nHow did she know and how does this relate to the problems of cytostatics in Romania?\nFor many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country.\nSo when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was.\nDuring my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was \u201clucky\u201d: only had to buy once dexamethason\xa0for myself, but they were not so lucky:\xa0 either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with \u201dthe dossier\u201d), either they had to figure out how to obtain certain medication themselves.\nBut two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment\xa0 reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn\u2019t.\nWas anyone inside hospitals listening or fighting back?\nThe situation was rather strange. The drug was expensive, not approved for my AIHA, but\xa0available in theory. My roommates\xa0 with Lymphoma could get it based on the dossier (so not standard). But they were missing other drugs, cheaper cytostatics like Bleomicin, compensated 100% from the state! It was like in the times when Mirjam Bercovici was active, all over again. Like nothing had changed in 40 years. Frustration was working both sides, because treatments sessions were postponed, sick people and doctors being equally worried.\nAll I knew was that doctors advised patients to figure out how to get the drugs. I had no idea how the people got it, as I was preoccupied with my own, at that time unsolvable, health issues.", u'entity_id': 517, u'annotation_id': 5015, u'tag_id': 135, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 5014, u'tag_id': 135, u'entity_type': u'post'}, {u'quote': u'I read this story and found it of interest.\xa0In a remote clinic in Mbankomo a\xa0doctor attaches electrodes to the chest of a patient lying on an examining table and records the patient\u2019s heart data on an African-designed touch screen medical tablet. The readings are then transferred wirelessly, over the mobile-phone network to specialists in distant urban centers for interpretation, diagnosis and prescribed treatment.\n\nHere is the full story:\n\nBy making it possible to perform tests, such as an electrocardiogram (ECG) in far-flung villages, the tablet is bringing high-quality cardiac care to remote and often poorly equipped countryside clinics where many Cameroonians go for their health care. It connects rural patients suffering from heart disease, many of whom do not have the means, the time, the contacts or the strength to travel to the big city, with Cameroon\u2019s few, primarily urban-based cardiologists.\n\n\n2014_05_art_2_1.jpg768x509\nThe Cardiopad, developed by 26-year-old Cameroonian engineer, Arthur Zang, promises to bring high quality cardiac care to remote rural communities. It is built to withstand the humid climate and rough terrain of outlying villages. Equipped with a battery, it can run independently for around six hours at full power. (Photo: E. Harris/WIPO).\n\nThe potentially life-saving Cardiopad \u2013 designed in Cameroon to address a Cameroonian problem, but which is also widespread across Africa \u2013 is the brainchild of 26-year-old engineer Arthur Zang. For now, the heart reading and interpretation are just a simulation \u2013 but that will change soon if Mr. Zang gets his way.\n\nThe winner of numerous overseas awards and grants, Mr. Zang hopes that his invention \u2013 imagine an iPad with home-build software built for deployment in the African bush \u2013 will revolutionize cardiac care in Cameroon. And for him, his business is also personal.\n\n\u201cThere are a lot of people in my family who suffer from cardiac illness,\u201d he says referring to the recent heart-related death of his uncle. \u201cSo personally, this has affected me but above all I would say it has impassioned me, because I know personally the daily existence of people living in the village \u2026 I lived myself in a village and I know how difficult it is to get specialist care.\u201d\n\nAccording to Mr. Zang, Cameroon has only a few dozen cardiologists in a country of around 22 million people and these are clustered in urban centers like the capital, Yaounde, or the main seaport town of Douala. Roughly half of Cameroon\u2019s population lives in rural areas, according to the World Bank, while many others live in urban areas that do not have access to heart specialists.\n\nLife-saving potential\n\nThe young engineer saw a problem and set out to try to fix it. In 2009, while still a student, Mr. Zang began developing a software product that could help doctors monitor the health of their patients\u2019 hearts. He made contact with a Yaounde-based cardiologist, Professor Samuel Kingu\xe9, who helped him better understand the type of technical solutions required. With these insights, the young engineer finally wrote a program that he loaded onto an off-the-shelf device. But he soon realized he needed the flexibility of his own platform, and so turned to developing his own hardware \u2013 the Cardiopad. \u2013 the first medical tablet in Africa, says Mr. Zang.\n\nThe Cardiopad has a simple-to-use, touchscreen interface that is adapted to the needs of remote health workers who may lack familiarity with the latest computing devices and the know-how required to use them. In tests by the Cameroonian scientific community, the Cardiopad has proven 97.7 percent reliable. It is solidly built to withstand the humid climate and the shocks incurred while being carried over rutted, often unpaved dirt roads like the one leading to the clinic at Mbankomo. The device is also built to withstand the frequent power cuts experienced in Cameroon and across Africa. Equipped with a battery, it can run independently for around six hours at full power.\n\nWith some 30,000 euros funding from the Cameroonian government, Mr. Zang was able to create a prototype and eventually travel to China, where he found a factory that could produce a limited run of Cardiopads while he searched around for partners to help fund his venture. Obtaining investments has been difficult. Finding the right contact in overseas companies is a challenge and the pitch is no easier. The device is designed to help Africans in rural, impoverished communities; \xa0something that not all companies see as a promising prospect, Mr. Zang says. That\u2019s why he intends to tap into a very modern financing model \u2013 crowd-funding on platforms such as Kickstarter, where users can donate funds to, or purchase shares in, fledgling firms.\n\nFor now, he is searching for more funding, hoping to build upon the CHF 50,000 grant he received as a Rolex Award Young Laureate 2014. While funding issues have been a constraint, the pilot tablets he has been able to produce are now being tested in hospitals in Cameroon.\n\nMr. Zang\u2019s aim is to produce and sell his device for around 2,200 euros which is significantly cheaper than other commercially available, less portable devices. The hope is that hospitals purchasing the low-cost Cardiopad will be able to lower the price of medical examinations and speed-up medical diagnoses.\n\n\n2014_05_art_2_2.jpg768x704\n(PHOTO: MIMORE MEDICAL)Patenting the Cardiopad\n\nHe also turned to the intellectual property (IP) system to help advance his work. In December 2011, he applied for a patent via the Organisation Africaine de la Propri\xe9t\xe9 Intellectuelle (OAPI) in Yaounde [see box]. OAPI later granted him a patent (No. 16213) on his technology, covering some aspects of both the software and the hardware.\n\nObtaining a patent was an important step for Mr. Zang. \u201cI did it to reassure myself,\u201d he said, \u201calso to protect the product, and to have a lot more credibility in the eyes of, for example, partners with whom I wanted to sign contracts in order to be able to produce and then sell the product.\u201d\n\nWhen funds permit, he also plans to register the Cardiopad, and his company, Himore Medical, which currently produces the tablet, as trademarks.\n\n\u201cThe intellectual property system can help us in Africa \u2013 it can add credibility to African products. And credibility has repercussions on the business plan because if you aren\u2019t credible, it\u2019s difficult to sell your product,\u201d says Mr. Zang.\n\nDriving new developments\n\nThe budding entrepreneur is already in collaboration with other young Cameroonian engineers to develop a range of additional medical devices and technologies for rural areas. He points to what he views as a disconnect in the innovation environment in Cameroon: in the medical space, in particular, many of the creators and inventors are young like him \u2013 roughly half of Cameroon\u2019s population is under the age of 18 \u2013 so they rarely suffer from the diseases that products like the Cardiopad are designed to address.\n\nFurther, with a rapidly urbanizing population, urban dwellers may all too easily overlook the specific needs of those living in remote rural areas. For Mr. Zang, innovation requires a flexible mindset, a deep understanding of an entire economic ecosystem and an ability to commercialize ideas.\n\n\u201cYou can\u2019t only have engineering ideas,\u201d he says. \u201cWe have to go further, into researching the problems confronting Africans and then pursue research into solutions, subsidize the creation of companies, create business incubators that can help nurture projects, researchers, engineers and really help them move from the laboratory to the factory.\u201d\n\nPursuing a dream\n\nUltimately, Mr. Zang\u2019s dream is to continue working to \u201cimprove life conditions\u201d by branching out into other areas of medical technology, envisioning specially adapted devices for echography and radiology.\n\nIn the Mbankomo clinic, the lack of these higher-end materials is evident. Surrounded by a tidy plot of well-brushed soil dotted with shade trees, the one-story clinic is austere. Patient consulting rooms are cooled by open windows, but little advanced machinery is on display. Mr. Zang says doctors at the facility are overwhelmed by the health needs of patients, which range from the mundane to the mortal. Connecting these clinics to better-resourced hospitals elsewhere via the mobile phone system is establishing a lifeline.\n\nMr. Zang hopes ultimately to manufacture the Cardiopad in Cameroon, and to help the country develop as a manufacturing center for lower-cost devices specifically tailored to low-resource environments and markets, like those in West Africa.\n\n\u201cThis will help lower the cost of medical exams and the cost of good health across the regions, in the villages,\u201d he says. \u201cThat\u2019s it, that\u2019s the dream that is smoldering in me.\u201d', u'entity_id': 555, u'annotation_id': 11976, u'tag_id': 1970, u'entity_type': u'post'}, {u'quote': u'As a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, C\u0153ur d\u2019Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way.', u'entity_id': 672, u'annotation_id': 5025, u'tag_id': 1970, u'entity_type': u'post'}, {u'quote': u'This is a trying question. In my personal work using participatory methods and facilitation, I\'ve found that audience members generally respond positively to these new formats, perhaps because it is visual and emotion-invoking. When producing the Digital stories and the Events with CCWs, we found people openly reacting to persons they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state "If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn\'t want to be sick like that so he stopped".', u'entity_id': 33824, u'annotation_id': 5040, u'tag_id': 139, u'entity_type': u'comment'}, {u'quote': u'This doesn\'t have to be a \'full-blown\' mental illness, but any thing that has weighed on them emotionally.\xa0\n@Moushira suggested yesterday in our community call that engaging people to share their issues shouldn\'t be put under headers of "mental health" but under something more like "emotional health". Similarly, \xa0@Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness\xa0can contribute to lowering the threshold as mentioned above.\nGuys, next Monday we are hosting an online\xa0conversation about emotional care, feel free to join in at 4:30 PM.\nPS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.', u'entity_id': 12389, u'annotation_id': 5039, u'tag_id': 139, u'entity_type': u'comment'}, {u'quote': u'I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective.', u'entity_id': 726, u'annotation_id': 5038, u'tag_id': 139, u'entity_type': u'post'}, {u'quote': u'that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved in processing the emotions experienced in\xa0that place"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.', u'entity_id': 21365, u'annotation_id': 5037, u'tag_id': 139, u'entity_type': u'comment'}, {u'quote': u'When it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.', u'entity_id': 18565, u'annotation_id': 5036, u'tag_id': 139, u'entity_type': u'comment'}, {u'quote': u'emotional healing of groups of people and how we so inadequately meet that in product driven cultures.', u'entity_id': 16456, u'annotation_id': 5035, u'tag_id': 139, u'entity_type': u'comment'}, {u'quote': u'C:\xa0this track to do with emotions and mind etc can be a long term track within opencare;', u'entity_id': 5658, u'annotation_id': 5034, u'tag_id': 139, u'entity_type': u'post'}, {u'quote': u'I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.', u'entity_id': 548, u'annotation_id': 5033, u'tag_id': 139, u'entity_type': u'post'}, {u'quote': u"The process can be\xa0a catalyst towards peace of mind and balance, which is a healthier attitude than striving for an unattainable bliss where there's no trace or memory of the negative experience. The former is resilient for the future, the latter is very fragile. When you start purging negative emotions, there's usually some collateral damage and you end up taking down\xa0good things as well.", u'entity_id': 15934, u'annotation_id': 5032, u'tag_id': 139, u'entity_type': u'comment'}, {u'quote': u'"Popular culture tends to talk about purging emotions, as if emotions are toxic material that needs ejecting from your system, but what Ngala\u2019s work shows is that the magic is in the courage to speak honestly and the grace of being heard: that\u2019s when emotions turn into understanding"', u'entity_id': 9118, u'annotation_id': 5031, u'tag_id': 139, u'entity_type': u'comment'}, {u'quote': u"How can we get better as groups at learning from the experiences we go through? I have been wondering about new approaches to care and this question has been much in my mind since interviewing members of the public during a project about the \u201cword on the street\u201d in Liverpool in 2015. It was a sobering month in which I came to know personally\xa0just how disaffected and disenfranchised the public felt about anything changing for the better in England.\xa0 In a comment on the Edgeryders community call on improving\xa0how we support each others mental and spiritual health, I wondered if \u201ceveryone who lives in a distributed area is in some way involved in processing the emotions experienced in that place\u201d. I feel a great potential for technological networks to create rituals and bring people together to process experiences in new\xa0ways. Generally, I'm talking about creative\xa0networks for coming back to life: networks that invite people into a social experience to care about themselves and other people, to keep hold of their hopes, to understand beyond their own spheres of experience and to find\xa0support\xa0in being\xa0the magician of their own life. This is speculative stuff, I realise, so I\u2019ll\xa0anchor my offering to this strand in real examples and share work that I know of and am making.", u'entity_id': 553, u'annotation_id': 5030, u'tag_id': 139, u'entity_type': u'post'}, {u'quote': u'The expression "taking care of something" as a German is a rather rational, dry and goal-oriented task. It somehow misses the core of its literal meaning which is a soft, emotional and gentle interaction. So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back? We discussed the question of how can something seemingly burden full turn into a joyful engagement. How can we overcome this cognitive dissonance and what is that undefined obstacle that holds us \u200bback. Because it\'s not laziness. It\'s not carelessness. Maybe it\'s a combination of helplessness (of where to start, what to focus), being overwhelmed (by one\'s own life and tasks) and alone (with an ambition too big for one person). And maybe the answer of today is community.', u'entity_id': 650, u'annotation_id': 5029, u'tag_id': 139, u'entity_type': u'post'}, {u'quote': u'However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO\u2019s are \u2018good\u2019, while they don\u2019t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.', u'entity_id': 37182, u'annotation_id': 11782, u'tag_id': 140, u'entity_type': u'post'}, {u'quote': u'or global movements.\nFirst when I asked her to give a short opinion about the bottom up imitatives organizing care related projects she responded: I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective. I was really surprised by this ballsy argument so I invited over for a drink on the hottest day of the year (35\xb0C!) and we had a tomato juice and a great conversation.\n\nWe dived immediately into the subject. Care is a government issue for\xa0 her that isn\u2019t at all taken care (pun intended) of. Why does the government give as much power to the pharmaceutical industry for example? Why can Nestl\xe9 become the number one partner of a government organization called \u2018Kind En Gezin\u2019 that helps parents of new-born through the first year? For her our role as activist and change makers is to put pressure on the government to make change on a big scale possible.\nI explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn\u2019t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government.\nBut Ginette isn\u2019t the person to only be sceptic and give critic towards ideas. She likes finding solutions. So before I explain her the principle of the workshop we talk a bit further on the big problems ahead. For her everything can be put into three categories: poverty, elderly care and work ethics. Poverty makes it impossible to take care of each other; it is a vicious circle that is difficult to get out of. Even with the best projects, people without money will not get towards it. Elderly care is also a big problem in European countries, care became profit and it is all about efficiency. Only a rearrangement about how we look at elderly care can get us out of this problem. Finally there is the way we look at work and how it makes us sick: burn out is one of the biggest epidemics of this century and involves pulls the whole family downwards. Not one political party is discussing these problems on a larger scale and that is problematic for her. The resources are there, but the unwillingness of changing is bigger. Politicians aren\u2019t trained to be vectors of change; they are the ones that bring continuity. It\u2019s the civilians that need to push the change and politics to implement it.\nDark times ahead? Maybe, but this discussion made me think more clearly about the workshop and what we need to take notice of when bringing care-project together. Like within the makers movement it is important to find a balance between corporate and counter culture partners, within care it is also important to have an open approach towards policy makers. Yes we are in a ruff path at the moment, and trust is at an all time low towards politicians. But therefor it is the moment to open our arms to welcome them towards new ways of organizing care. We need much more and easier collaboration between projects. We need especially that knowledge of the government to tackle complex problems with multiple partners. We need to take them by the hand and show them what there is possible within an open care system\nThe discussion I want to open towards the community is: Is involving the policy makers important, or will it be obsolete in the future? What kind of dialogue can care taking projects take towards it?', u'entity_id': 726, u'annotation_id': 5041, u'tag_id': 140, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 668, u'annotation_id': 5048, u'tag_id': 141, u'entity_type': u'post'}, {u'quote': u'I wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about\xa0children moving\xa0away to become independent is true, and so living\xa0with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..', u'entity_id': 15792, u'annotation_id': 5047, u'tag_id': 141, u'entity_type': u'comment'}, {u'quote': u'If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we\u2019re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.', u'entity_id': 521, u'annotation_id': 5046, u'tag_id': 141, u'entity_type': u'post'}, {u'quote': u'caring doesn\u2019t only mean to give but also to be able to receive. to connect stay in touch.', u'entity_id': 651, u'annotation_id': 5045, u'tag_id': 141, u'entity_type': u'post'}, {u'quote': u'Monetization and how it affects our view on people around us: that we cannot be more intuitive because we think about how we can be most effective.', u'entity_id': 494, u'annotation_id': 5044, u'tag_id': 141, u'entity_type': u'post'}, {u'quote': u'It\u2019s not a one-way street,', u'entity_id': 494, u'annotation_id': 5043, u'tag_id': 141, u'entity_type': u'post'}, {u'quote': u'And apart from that my main insight is that care is always interactional, its not a one way street. The system of capitalism is making it a one way street because there s wlays money in and something out. It\u2019s not evolutionary.\u201d', u'entity_id': 494, u'annotation_id': 5042, u'tag_id': 141, u'entity_type': u'post'}, {u'quote': u'And it would be unwise to put it down to human error or happenstance.\xa0Some scientists argue convingly that for humans to divide between "us" and "them"\xa0is innate, because in our hunter-gatherer past we evolved under selection pressure at the group level. A full argument is made by E.O. Wilson in The Social Conquest of Earth. Thanks to @WinniePoncelet for recommending the book to me.\xa0', u'entity_id': 28468, u'annotation_id': 5051, u'tag_id': 142, u'entity_type': u'comment'}, {u'quote': u'Really hard one: We have a flag over our head, marking our belonging to a certain group of people with common "values", the first one being same nation based on tradition/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don\'t have time/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our "benign\xa0attempts to civilise them"(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.', u'entity_id': 26012, u'annotation_id': 5050, u'tag_id': 142, u'entity_type': u'comment'}, {u'quote': u'This question where german politicians are saying we have to take care of our people, and not just give everything away. Same thing at a different scale', u'entity_id': 494, u'annotation_id': 5049, u'tag_id': 142, u'entity_type': u'post'}, {u'quote': u'& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\xa0http://byzantium.chroma.space/about/\xa0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\xa0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\xa0equal relations and shared experience feels like a stronger emphasis: designing systems for\xa0"live", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\xa0to hold together around\xa0the varieties of experiences endured on this earth.', u'entity_id': 18565, u'annotation_id': 5053, u'tag_id': 143, u'entity_type': u'comment'}, {u'quote': u"Real-life conversations from real experience in which neither party is an expert\xa0can be life changing.\xa0I work a lot with VR and seeing through another's eyes is certainly helpful but what\xa0really leads to\xa0change is\xa0honestly communicating difficult\xa0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\xa0process that allows for shifts.", u'entity_id': 16456, u'annotation_id': 5052, u'tag_id': 143, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 773, u'annotation_id': 5126, u'tag_id': 149, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 5125, u'tag_id': 149, u'entity_type': u'post'}, {u'quote': u"When we arrived to move into the house, we seemed like an unlikely crew. There were three lads living there already - Kieron, Dave and Billy. Kieron was the leader. He had a drill. Billy was very pale and very thin - kind of morose somehow while at the same time desperately optimistic. He looked like he hadn't seen a vitamin in months. Dave on the other hand, was just mad. At this point, quite obviously, even certifiably, mad. Just a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. They say what doesn't kill you makes you stronger, but I'm not so sure I believe them. Dave's approach was to break out of the place and find himself a squat to live in with a couple of mates and several total strangers, one of whom had been recognised by Kieron from a free party, when they bumped into each other down at the job centre. Its amazing what gets hatched down at the job centre, and I'm not talking about anyone finding a job. But anyway, when we turned up at the squat, Dave was living on the sofa in the lounge in a haze of ashtray cigarettes and cheap cider, eyeing the curtains nervously and never far away from a large knife. You got the feeling he was pretty keen never to go back inside that place if there was anything he had to say about it. And he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either. Dave seemed to be doing pretty well as far as I could see, considering everything that he'd gone through so far in his life. He told me his Dad was always drunk and often violent. He said his mother had been killed, shot by a farmer standing in front of her dog trying to protect him while out for a walk. That was when he left home. He'd had a job as the look-out for a gang of thieves that robbed industrial units at the age of nine. A little later he'd gone to live with a family of Irish travellers who'd trained him to be a bareknuckle boxer, a discipline at which he was apparently quite talented. Some time after that he'd bought a house, back when they gave mortgages to people with no job, no credit rating and no intention whatsoever to make even a single repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment. \n\xa0\nOn the one hand, Kieron and Billy were quite happy to have Dave and his knives living on the sofa. After all, this was a squat, and you never know what might go down. Sometimes you have to defend a place, and while Kieron liked his drill, that was about the limit of his handiness. And if anything serious went off you'd most likely find Billy in a cupboard. So Dave had his uses. And anyway, they were mates. But in this condition, he wasn't exactly easy company. So naturally, Billy and Kieron started to pal up a little. They shared a floor in the house with a kitchen in it, they went outside from time to time. They liked to get stoned together, and have a laugh. But this was unsettling to Dave somehow. He'd been mates with Billy for years, since the time he bought the house. He had no family left, no real friends after all the alcoholism, the drugs, the crime, and the madness. Billy was about all he had. And now he was feeling him drifting away. It all came to a head one full moon. It 'd been building for a while. You could feel it all through the house, under the neon strip lights in the corridors. Tension. The more Dave got wound up, the more Kieron and Billy retreated into their little flat. Sometimes you could hear him shouting incoherently in the lounge on his own. It wasn't very reassuring. But on this particular night, we found him shouting slightly more coherently, and it wasn't at himself. It was directed at Kieron. Dave was pacing the lounge, muttering to himself, wild-eyed. Then suddenly, something snapped. He grabbed his largest knife from under the cushions of the sofa and stormed out in the direction of the stairs. Larissa, sharp as ever, phoned Kieron fast and told him to lock his door. She was just in time. \n\xa0\n'Yer fuckin big gay bastard! Open t'door.' \n\xa0\n'Fuck off Dave' said Kieron, with his foot set hard against the door to keep his demented friend from getting in. \n\xa0\nIt wasn't looking good. Dave was stabbing the door repeatedly with his enormous blade, while Kieron, who fortunately for him liked to eat a hearty meal, was leaning against it with all his weight. \n\xa0\n'Open t'door or I'll fookin kill yer both'\n\xa0\nIf I open t'door, that's when you'll fookin kill us both, was more what it looked like. \n\xa0\nThe rest of us were gathering downstairs in the lounge. We'd known these people a week, and this was the only place we had to live. We were not ecstatic about the situation. And besides, we were worried, as much for Dave as for Kieron and Billy. We really liked Dave. He was a lovely lad, underneath all the addictive behaviour, the paranoia and the threat of imminent violence. I'd had a good connection with him from the start. We both had Irish ancestry. We shared a dark sense of humour. Dave's kind of funny was to make unbelievably hot curries, knowing that Billy didn't like them, but that he had no money and that there was no other food in the house. And then to watch Billy eating them, as his face got redder and redder, and his expressions grew ever more absurd. That was like Dave's perfect joke. So anyway, I headed up the stairs, with Dom close behind. The stairwell was pulsating, neon, harsh light. Nowhere to hide. Kieron's door was closed now, with the giant knife stuck in it, wobbling, and Dave half-shouting half-sobbing, desperately scared of losing his friend, his mind, his freedom. I wondered about his family history, and how much comprehension he had of his own emotional reality. It can't have been easy for him. And I thought about my own safety. But however erratic he'd been acting, I didn't feel any kind of malicious intent would be directed towards me.\n\xa0\n'Dave, Dave. Dave man, it's me.'\n\xa0\nDave was in his own world, and it was breaking down.\n\xa0\n'Dave, what's up man? Why don't you put the knife down?'\n\xa0\nHe kicked the door a couple of times, just desperate now, more than dangerous. My heart broke for him.\n\xa0\n'Dave, you're bleeding mate! Look. Let me see that hand.'\n\xa0\nDave looked at his palm, which had been cut by the knife as he had rammed it repeatedly into the door. It wasn't serious, but it was badly enough to make a fair mess. The sight of his own blood seemed to bring him back to himself. All the fight had gone out of him now. You could see he was ready to be taken care of.\n\xa0\n'You should get that seen to Dave. You want me to come with you mate, we'll go down to the A&E dept at the bottom of the road?'\n\xa0\nHe let me lead him away, still staring at his bloody palm, and I placed my arm around his shoulders as Dom discretely removed the knife from the door and hid it out of sight. The crisis it seemed, was over. At least for now. But still, we had an evidently pretty broken human being on our hands, and what the hell were we going to do about that?", u'entity_id': 502, u'annotation_id': 5124, u'tag_id': 149, u'entity_type': u'post'}, {u'quote': u'Even in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women\'s work \u2013 looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects \u2013 accounts for a far greater proportion of what working-class people do when they\'re working than hammering, carving, hoisting, or harvesting things.\nThis is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers\xa0recently had to explain\xa0to indignant commuters, "ticket takers" don\'t in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused.\nCaring too much. That\'s the curse of the working classes.', u'entity_id': 24339, u'annotation_id': 5123, u'tag_id': 149, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 749, u'annotation_id': 5122, u'tag_id': 149, u'entity_type': u'post'}, {u'quote': u"@Village-Psy maybe you can help us understand why self care is so expensive for one to offer it to herself. Have you read about the 24/7 caregivers who simply can't switch off? If you have something to offer to that discussion and would be willing to head over there\xa0it would be very well received.", u'entity_id': 21911, u'annotation_id': 5121, u'tag_id': 149, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20496, u'annotation_id': 5120, u'tag_id': 149, u'entity_type': u'comment'}, {u'quote': u"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.", u'entity_id': 7782, u'annotation_id': 5119, u'tag_id': 149, u'entity_type': u'comment'}, {u'quote': u'\u201cWe started off by talking about situations in our lives where we have given care, or seen other people receiving care. Who are those people who have taken on traditional care of caregiving? We quickly started talking about feminist issues and women being caregivers through history. We also talked about the rewards, how giving care is valued, if valued at all or you get financial remuneration\u2026\u201d', u'entity_id': 494, u'annotation_id': 5118, u'tag_id': 149, u'entity_type': u'post'}, {u'quote': u'Helping both caregivers and care receivers in dealing with dementia', u'entity_id': 5479, u'annotation_id': 5110, u'tag_id': 149, u'entity_type': u'post'}, {u'quote': u'Really encouraging to read this, Frederico. I am involved in an emerging group (we call it Caring for Life) looking to acquire care homes in the UK and start to liberate the staff and transform the way care is given. Like you, we are inspired by an open paradigm of care giving, as well as stories of self-managing organisations such as Buurtzorg. It is early days yet but when we have got a bit further, it would be good to hear more about your work and\xa0 approach', u'entity_id': 26035, u'annotation_id': 5061, u'tag_id': 144, u'entity_type': u'comment'}, {u'quote': u'For those in the UK, this programme was excellent! (A VPN may help those elsewhere...)\nhttp://www.bbc.co.uk/programmes/b08c2mlk\nShows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.\nThe issue of addressing bed-blocking, specifically elderly patients in expensive hospital beds not being able to be released due to cuts in necessary social care provision (e.g. home visits to check on the former patient, giving medication, or even just checking the patient has all they need in terms of feeding and other basic care essentials)\xa0is mentioned, along with the practical difficulty of addressing it using the common-sense idea of utilising much cheaper\xa0spare capacity in care homes.\nAnother issue mentioned is the fact that people are often going in to care homes later in life, and when they need more care. (It\'s mentioned that residents used to arrive driving themselves to a\xa0residential care home!) It does seem the last resort now, with people hanging on as long as possible in their own homes, even if that means being on their own and struggling with shopping, cooking, etc.; less onus seems to be placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the "invisibility" of the elderly, our fear of aging and death nowadays,\xa0marketing, the cult of the self and independence, or somesuch?\nProgramme description -: "Care Homes - The care home business is heading for a crisis according to Evan Davis\'s guests in this edition of The Bottom Line.\nThe cost of providing care in this labour-intensive business has increased significantly because of the introduction of the National Living Wage. The fees paid by local authorities on behalf of poorer residents no longer cover the cost of providing accommodation, food and staffing. Care homes make up the shortfall by charging higher fees to privately funded residents. Social care analyst William Laing tells Evan Davis that private payers subsidise publicly funded residents by, on average, \xa38000 per annum. But this is not an option in less affluent areas with a shortage of fee paying clients.\nJohn Ransford of the HC-One group provides care for mainly publicly funded residents. He tells Evan that 24 hour care for the elderly has to be provided for less than the cost of a night in a Travelodge.\nEvan\'s guests believe that the care sector\'s business model is unsustainable. Find out what they think will happen next.\nDr. Jane Townson. Chief Executive Officer, Somerset Care Group\nJohn Ransford, Non-Executive Director, HC-One\nWilliam Laing, Founder and a Director of Laing Buisson, Healthcare Intelligence Company"', u'entity_id': 29077, u'annotation_id': 5060, u'tag_id': 144, u'entity_type': u'comment'}, {u'quote': u"To return to the main points - I do think small care institutions can bring advantages, good personal care and rewarding relationships, but we do need to look at funding in this country. We also need to look at how we consider and treat the elderly in this country. These are big issues, but it is a matter of priority. I don't wish to turn this in to a political comment, but the current thinking seems to be aimed at small government, austerity and cutting services and council funding. Sooner or later we will have to accept more taxes if we want good social services.\n\nI do like the ideas initially expressed at the top of this thread, but it would seem to get these accepted and off-the-ground one would have to push for acceptance from the council, government or regulatory body concerned. I am sure there would be interest in alternative care provision, given the struggles in the sector at the moment, and I'm sure families of those needing care would be interested in such alternatives too.", u'entity_id': 27817, u'annotation_id': 5059, u'tag_id': 144, u'entity_type': u'comment'}, {u'quote': u'Definitely suggest a test case and liaising with local CGCs / councils... The sector is very heavily regulated by CQC (Care Quality Commission), and the mandatory requirements are quite intense in terms of staff training & numbers, facilities, type of care offered, activities, care planning, health & safety (including prevention of infection - limiting doing "funky" things with premises, unless one works really hard), etc.\n\nThe idea of making endless profits by shoving people in a care home and doing nothing for them is a myth, as is the idea of private equity jumping in to the sector to clean up... (Look at the spate of the disposals and failures in the sector.) Trust me, as someone with knowledge and experience in the sector, there are a LOT easier ways to make money, especially by pure property plays. WHY would a new corporate go in to such a demanding area, unless they had experience or size advantages / consolidation to bring to it?\n\nNot sure how you\'d bring in clients;\xa0if council funded, you\'d definitely need to comply with regulations, equally if private you\'d need to comply and attract customers. (Remember the market is competitive and low return, and council-funded clients will barely cover your minimum staffing and food costs.) Perhaps voluntarily attending such an entity would work?\n\nYes - to the idea of intergenerational interaction and care, yes to more community involvement and interaction for residents; but also yes to actually researching the practicalities involved...\n\nHave seen good examples of "care villages" elsewhere, especially designed to deal with dementia and Alzheimer\'s cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused\xa0society.\n\n(I\'d suggest looking up CQC documentation - available online, together with detailed requirements for various levels of care e.g. residential without nursing, residential with nursing, dementia care, etc.)', u'entity_id': 26047, u'annotation_id': 5058, u'tag_id': 144, u'entity_type': u'comment'}, {u'quote': u"Hi Noemi, in response\xa0 to your post, I would say we want to be inter- dependent,\xa0 not independent!\xa0\xa0\xa0 I guess I wrote the original post in rather a hurry, in response to the Open&Change\xa0 call, so\xa0 it probably didn't get it quite right.\xa0\xa0 I see our project as forging some third way between state or charity\xa0 ownership on the one hand, and private for-profit ownership on the other.\xa0 it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.\xa0 I envisage a movement of care homes,\xa0 highly networked,\xa0 helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are\xa0 starting slowly", u'entity_id': 24250, u'annotation_id': 5057, u'tag_id': 144, u'entity_type': u'comment'}, {u'quote': u'This is a beautiful story.\nIn an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms.\nIt seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they\u2019re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them\xa0tech-savvy skills like using email, social media and Skype.\xa0The bonding created from spending time together is incredibly important for everyone. Social relationships are key\xa0to human well-being and in the maintenance of health.\xa0The intergenerational living model started in 2012, with a few more nursing homes follow. \xa0Regular social interaction is necessary for mental health as well as social interaction.\nRead the complete story here: \xa0https://goo.gl/LYUpPP', u'entity_id': 809, u'annotation_id': 5056, u'tag_id': 144, u'entity_type': u'post'}, {u'quote': u"hello, I was reminded of this post as we are having a conversation on care homes which run on intergenerational care. You might want to have a look here (mentions of other Dutch and American well run facilities too).\nWhat do you mean by independent care homes? From the very little I know about the UK care system, many times services are provided by both NHS and affiliated trust foundations whose status is formally semi-autonomous. Also, many times services are signposted to third sector/ independent organisations, which makes me wonder if you see your new organisation working in similar partnerships?\xa0Do \xa0you want to be independent in status or also in your practice - meaning little or no collaboration with the existing system as it is now? I'm curious about the positioning, and it can also be relevant for our research. Also ping @Tino_Sanandaji for possible interest in this.", u'entity_id': 20540, u'annotation_id': 5055, u'tag_id': 144, u'entity_type': u'comment'}, {u'quote': u'What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That\u2019s our dream.\xa0\nA bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix). \xa0It is a familiar story.\xa0 The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly.\nAt the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population\u2019s increasingly complex care needs.\nAt the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the "growth opportunities\u201d. \xa0The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff.\nCaring for Life is a diverse team has come together to seek a better solution. We are inspired by:\n\nopen source communities, that harness collective intelligence to find new solutions to old problems;\nnetworked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large.\ntraditional community-based approaches to care-giving that are human-centred and sustainable.\n\nWe intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see. \xa0Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK.\nA key operating principle will be to involve all "stakeholders".\xa0 Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture.\nCare home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person\'s "support system". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected.\nLegal structure:\xa0 Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home. \xa0There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability.\nGetting started:\xa0 Our intent is to start by acquiring control of one care home.\xa0 In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.\xa0 This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.\xa0 The home is currently subject to "special measures\u201d, imposed by the Care Quality Commission.', u'entity_id': 758, u'annotation_id': 5054, u'tag_id': 144, u'entity_type': u'post'}, {u'quote': u'Hospital to Home team striving for a healthier and happier Derby', u'entity_id': 31827, u'annotation_id': 11977, u'tag_id': 145, u'entity_type': u'comment'}, {u'quote': u'What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That\u2019s our dream.\xa0\nA bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix). \xa0It is a familiar story.\xa0 The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly.\nAt the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population\u2019s increasingly complex care needs.\nAt the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the "growth opportunities\u201d. \xa0The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff.\nCaring for Life is a diverse team has come together to seek a better solution. We are inspired by:\n\nopen source communities, that harness collective intelligence to find new solutions to old problems;\nnetworked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large.\ntraditional community-based approaches to care-giving that are human-centred and sustainable.\n\nWe intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see. \xa0Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK.\nA key operating principle will be to involve all "stakeholders".\xa0 Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture.\nCare home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person\'s "support system". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected.\nLegal structure:\xa0 Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home. \xa0There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability.\nGetting started:\xa0 Our intent is to start by acquiring control of one care home.\xa0 In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.\xa0 This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.\xa0 The home is currently subject to "special measures\u201d, imposed by the Care Quality Commission.', u'entity_id': 758, u'annotation_id': 5064, u'tag_id': 145, u'entity_type': u'post'}, {u'quote': u'I can see it being a solution. Setting up someone with an IV is not rocket science; many people can be taught, and then help their neighbors who were not taught.\xa0Like with defibrillators: the Community First Responders scheme in the UK\xa0teaches people how to defibrillate each other in 3 days:\xa0http://www.communityfirstresponders.org.uk/', u'entity_id': 17879, u'annotation_id': 5063, u'tag_id': 145, u'entity_type': u'comment'}, {u'quote': u'I totally agree though - there are a lot of big trends - very many of which would point to moving the hospital to the patient and not the other way around.\n\nIf Romania has a bad stationary hospital scene, then one could see that as very good conditions to make it a well funded (EU level?) pilot project that looks at devolving care into communities further. Romania has a very strong IT backbone which would certainly help as well.\nSome aspects of such a care system could also be funded from defense money - because mobile care (and operating under overload) are things they have to handle as well. But that is only one aspect.\n\xa0@Sabina_U I am happy to see that people get organized well on the ground. What would be other things you need? Is it fair to characterize the situation as a market failure (on what level(s) are the causes then)?', u'entity_id': 11109, u'annotation_id': 5062, u'tag_id': 145, u'entity_type': u'comment'}, {u'quote': u"Great sharing, JUS team and @Omri_Kaufmann in particular!\xa0\n\nI am out of my depth: I have been sad but never depressed, exhausted but never burnt out. I have emotions, but they never seem to become medical conditions\xa0somehow. Lucky me.\xa0\n\nBut many people seem to think it's the human touch that makes the difference in care. Even the best designed sofa will not make you any less lonely.\xa0\n\nThe point is made (towards 12.00) by @Yara_Al_Adib in this video, since you want to be inspired you will probably like it!", u'entity_id': 20198, u'annotation_id': 11979, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u'With an anthro perspective it turns out that the most important thing after a hear attack are your friends!', u'entity_id': 23866, u'annotation_id': 11978, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u'That\'s it - "identify microclimates\xa0and bottom up organising at the same as distilling policy implications". That is the direction I hope the theme will take us in!\nBigger arenas is another interesting dimension and I\'d hope that by identifying the enabling factors this will be like knowing what\xa0ingredients are needed no matter the size of the pot! Healthy growth for wider impact would be a goal.\nLooking forward to more shared insights on these topics!', u'entity_id': 21670, u'annotation_id': 5084, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u'Conversations over the first month have helped to refine the theme from how I\u2019d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors\xa0that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots\xa0care initiatives. They will help to define the \u2018microclimates\u2019 that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the\xa0more disbursed ecology of care called for in response to\xa0growing health needs.', u'entity_id': 6462, u'annotation_id': 5083, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 5082, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'There is always a\xa0series of encounters and discussions that help pave the path that\xa0led to idea creation. During these conversations, it;s the human "Why"- not the scientific "Why".It\'s in those personal interactions that give a voice to humanistic problems. \xa0@Noemi @Nadia', u'entity_id': 7329, u'annotation_id': 5081, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u'Co-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily. \xa0When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented.', u'entity_id': 861, u'annotation_id': 5080, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'So what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?', u'entity_id': 23982, u'annotation_id': 5079, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 5078, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'My current project, a weblab named Puntozero (http://puntozero.github.io/), explores the ways in which teachers, professors, tutors and students -used to the traditional model of lecturing a class and equipping people with theoretical knowledge and in-field training- might integrate in a community of practice to innovate the way of learning. This year there are about 150 students involved. The brainstorming about proposals include more talking to the patients, who want to collaborate and surely want to see medicine more friendly, more efficient, more human. It is important to change the way we see health care - not as a prestigious, restricted profession for a selected group of professional, but as a practice that has been there for thousands of years, a huge amount of collective wisdom that pioneered and support what we call medicine and care right now.', u'entity_id': 524, u'annotation_id': 5077, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'@Sharon you are so right to say that deep healing comes through human contact and openess -', u'entity_id': 24078, u'annotation_id': 5076, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 5075, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'Human connection\xa0- "if you just throw your thoughts in the air without any feedback it is less interesting than if you are sharing with people with whom you have an intimate relationship" (Nadia).', u'entity_id': 5658, u'annotation_id': 5074, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'I would be interested to see if some interventions can trigger more emphatetic treatments and how that affects patient\xa0wellbeing. Things like "Hello my name is..." campaign for practitioners to\xa0be more humane, or the other day I was reading about inserting empathy in the medical studies -\xa0"What Medical Residents Learn from Art Museums". \xa0These things\xa0don\'t feel too sophisticated things to do for apparently very high returns. We all seem to\xa0agree that "more empathetic" is better for patients wellbeing, not just satisfaction which is more obvious.', u'entity_id': 13150, u'annotation_id': 5073, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u'We came to conclusion that care, giving and receiving, is a basic human need and a human right. It\u2019s not a one-way street, but we need to talk about care as a devalued thing in our society. There are people who really love to give are and do not have the right to get something for it. We thought about how to make people who give care more visible. How can we provide some kind of reward or value for the volunteers. And of course we went in the feminist direction but I think it is a really important thing to value care as a huge thing in society.\u201d', u'entity_id': 494, u'annotation_id': 5070, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but \xa0to help others and how this is deeply human at its core.\u201d', u'entity_id': 494, u'annotation_id': 5069, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'Care is deeply human. Everyone has first-hand experience of it. Even those if us who are not doctors or nurses or caregivers are occasionally patients (even doctors!); we all have first-hand experience of giving and receving care. So, everyone is welcome to join the conversation and the subsequent prototypes.', u'entity_id': 5510, u'annotation_id': 5065, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'2) Humane treatment - unlike the increasingly isolating and interventionist treatments common in industrial healthcare, the effectiveness of traditional acupuncture shows patients that good health can often be achieved through minimal intervention, through working with the body rather than against it, through self-help, and lifestyle and dietary changes. Demonstrating that a more humane approach to health is possible starts people thinking about what else they need to question.', u'entity_id': 671, u'annotation_id': 5072, u'tag_id': 1972, u'entity_type': u'post'}, {u'quote': u'It is for me ... making a difference for someone makes me feel profoundly human, part of humanity ... I think connecting, helping, supporting, caring restores humanity in us, in the other and in the world', u'entity_id': 24666, u'annotation_id': 5071, u'tag_id': 1972, u'entity_type': u'comment'}, {u'quote': u"As far as I know the reason why you wouldn't see explicit calls for drug transports is because legally you're not allowed to transport but your own. So this is a grey area -people needed to say it's their own if asked at the airport or borders, although technically they couldn't have been arrested on such grounds.. after all they weren't commercializing anything.\xa0Even if the s*** hit the fan,\xa0no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system\xa0and covered by the medical insurance!\xa0For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses.\xa0This is merely a more efficient and structured way of doing the same.\xa0\n\nStill, the network was semi-legal, meaning it operated under no clear incidence of laws. It's\xa0why I remember reading about\xa0Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie\xa0his face never shows.\xa0\n\nFrom looking at the website, it seems the network worked based on collecting forms filled in by patients/family with requests for medicine - it's not clear though how much of the\xa0matchmaking was aided by the technology and how much\xa0was done manually, through Vlad and his network. Anyhow, most people who were part of it didn't know each other IRL\xa0- like Vlad and Valeriu, who were key nodes in the network!\n\n@Sabina_U, lovely to meet you virtually, and hopefully in person soon!\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 17546, u'annotation_id': 11983, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u"Hi Alberto, thank you for your comment!\n\nThe post on FB didn't mention anything, just the travel question. But I saw it was a share from Vlad Voiculescu, so I understood in a second, even if the article that I read in november 2012 did not state his\xa0real name. But it was really not hard to connect the dots.\n\nSo in that evening we spoke for almost one hour on the phone  , then we met and I\xa0took the medcines, that was the first encounter so to speak.\n\n\xa0Basically, Vlad coordonated the whole thing, he bought the medicines at first, then he found a lot people willing to help with buying, from different cities in Europe and not only.\n\nSometimes Valeriu would pick up people from the airport, sometimes just meet them in Bucharest and took the medicines to the ones in need.\n\nI don't know how it was for other cities, but there the distances are smaller and I guess people sorted it out in a similar way.\n\nVlad also made a website: medicamente-lipsa.ro. People could acces it and find the missing drugs and the means to transport them.\n\n\xa0Not least, a movie was made after the investigation in Hotnews (the website where I read the story in 2012)\n\n\n  \n    hbo.ro\n  \n  \n    \n\nRe\u021beaua (2015)\n\nDocumentarul urm\u0103re\u0219te o re\u021bea de oameni binef\u0103c\u0103tori care cump\u0103r\u0103 din str\u0103in\u0103tate medicamente citostatice \u0219i le aduc pacien\u021bilor din Rom\xe2nia de vreme ce aici aceste medicamente nu exist\u0103.\n\n  \n  \n    \n    \n  \n  \n\n\n\nYou can see it here until september for free\xa0http://www.hbogo.ro/content/the-network-1053692950\n\n\xa0\n\nI hope this helps!", u'entity_id': 15312, u'annotation_id': 11982, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u'I think there is a lot in the medical field which is extremely bad to codify in(to) written language but can be learned face to face. I would think a "social network of people who went through your problems" would be useful particularly in regard to doctor-patient info responsibilities (the doctor is pressed for time and may not be able to relate to a patients situation as well as a "veteran" from the network).', u'entity_id': 20397, u'annotation_id': 11980, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u"When Denise was diagnosed with in 2015 she had support from family and friends, but still found that they couldn't fully understand what she was going through. It was only by chance that Denise crossed paths with Carry Hendrix who was going through a similar diagnosis. An interaction at the gym brought these women to share the same space. Their friendship started and strengthened, and from that bond, it eventually led them to an idea of starting CoreCareCollective. An initiative to support the emotional and social needs of people living with cancer. This initiative promises to create a network of support dedicated to ensuring all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.", u'entity_id': 35903, u'annotation_id': 11595, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 5103, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'The follow-up of patients ends with the integration of the patient in accommodation where he or she is regularly supported by professionals and volunteers of Street Nurses, and a network of social associations.\nWe aim to assist persons who live in extremely precarious situations by offering them a home and by permanently reintegrating them into society. This medium- to long-term goal is achieved by improving the living conditions and the hygiene of these individuals, as well as their self-esteem.', u'entity_id': 767, u'annotation_id': 5102, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u"I am Sabina Ulubeanu, a 36 years old mother who also like to describe herself as \u201e just a composer\u201d.\nIn the autumn of 2009, at 30,\xa0I suddenly began to feel sick: very weak, short of breath and I became yellow. My daughter was 7, and my son was 2. I was still breastfeeding and thought I was just tired and stressed out.\nWhat came next was an avalanche of\xa0investigations and meetings with doctors form many\xa0hospitals. After ruling out all sorts of terrible diseases and trying different treatments with no success, I went to Vienna where my condition was confirmed: Autoimmune Hemolytic Anemia.\xa0The newest drug for AIHA (Rituximab) \xa0was still not approved in Romania for this rare disease, so I basically moved to Vienna where thet gave it to me, with no positive outcome, and\xa0finally I had my spleen removed and got well.\nIt happened in \xa0March 2012.\nIn November 2012 I was again in Vienna for artistic reasons (and the usual check-up). This is when I read for the first time about the Network of Cytostatics. Everything was familiar to me: the oldest pharmacy in Vienna, the office above Mariahilferstr, but mostly, the struggle to regain one's health....\nIt was too soon for me to get involved, tha trauma was too recent.\n\xa0But in February 2013, a good friend, Simona Tache, shared on Facebook a status about needing someone going to Bucharest from Vienna.\n\xa0It clicked something inside me and I responded.\xa0\nWhat came next was overwhelming.\n\xa0Yes, I travelled\xa0home with medicine, calmly taking them through security and bringing them to Valeriu, the taxi driver that distributed them to the ones in need.\xa0More important was the fact that doing a simple thing, an easy gesture, meant helping someone's health and fighting a system that seemed not to care about the people. Everyone I talked to about the network felt the same: it is the least we can do!\n\xa0I truly believe people have the need to do good, to offer, to help each other.\nThe Network was a way of getting people together for a good purpose. I think it is the main reason it worked so well.\nIt responded the needs of others, but also our own need to give (time/ help/ encouragement).\nMy own personal gain, though, was tremendous. Not only you feel good helping others, but I became very good friends with Vlad Voiculescu, the initiator if the Network, supporting each other in many other so called impossible projects or just knowing we are there at a click or phone call away.\nI got involved because I knew what it means to be helpless against a disease and I will remain involved for as long as I will live, because this Network might not be needed now for cancer drugs, but it created a gathering of great souls that will be for sure needed for many other aspects of our society that need deep and profound healing.", u'entity_id': 698, u'annotation_id': 5101, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'It was made almost mandatory by the dean and resident advisers to participate in these groups. There was resistance at first by many and that kind of tapered off. Being a psychology major we helped develop these groups in collaboration with various student groups. It was quite astonishing to see the resistance then you see the connection that was made over time and the participants, well some of them anyway changed their direction and went into this field so maybe it was a chance to tap into their real path they were destined to follow. Through difficulties, we usually discover what we were meant to do. Each one teach one to reach one! Networks can indeed support and enhance the quality of life and provide a buffer against adverse life events and difficul', u'entity_id': 26061, u'annotation_id': 5100, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u'For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a\xa0form to win even when you lose.', u'entity_id': 507, u'annotation_id': 5099, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u"Hi Noemi, in response\xa0 to your post, I would say we want to be inter- dependent,\xa0 not independent!\xa0\xa0\xa0 I guess I wrote the original post in rather a hurry, in response to the Open&Change\xa0 call, so\xa0 it probably didn't get it quite right.\xa0\xa0 I see our project as forging some third way between state or charity\xa0 ownership on the one hand, and private for-profit ownership on the other.\xa0 it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.\xa0 I envisage a movement of care homes,\xa0 highly networked,\xa0 helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are\xa0 starting slowly", u'entity_id': 24250, u'annotation_id': 5098, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u'networked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large.', u'entity_id': 758, u'annotation_id': 5097, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'Were all members sufferers or family of sufferers? Was anybody other than Vlad in charge?\nWhen the article about the Network emerged, over 300 people joined the network through the website medicamente-lipsa.ro and found ways to bring home what was missing. Not all of them had sick members of their families. For most, it was just the little they could do in this horrible situation. The website was Med-Alert \u2018s Association\u2019 initiative, where Vlad is a founder, and there were more people involved in obtaining the cytostatics and other medicines. Still, Vlad is the one who got the dice rolling. He has the gift of inspiring others to do good, and it\u2019s contagious. Even though the majority of people involved did not now about each other, and many still do not know until this day, as little contact between the carriers of the medicines has happened. Still, the ones who met in real life bonded immediately and I will always state that the main gain of the Network was the amazing friendships resulting from it.', u'entity_id': 517, u'annotation_id': 5096, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u"was thinking about networks that could help this (and thinking around\xa0digital networks - Airbnb / dating apps etc. and looked at\xa0some mental health apps\xa0)\xa0I was mostly thinking about place and the fact that it\xa0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\xa0needed stepping up to. \xa0I don't know of many\xa0political\xa0utopias that really take into account neurodiversity and conditions like\xa0dementia.", u'entity_id': 16456, u'annotation_id': 5095, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u'A frank admission to start: the subject of networks of care is relatively new terrain for me. I\u2019m no expert and there are long histories and contexts that I cannot represent here.\xa0 I really welcome feedback, criticism, references and most of all, examples of working networks already in place. There are many excellent examples and the diversity of reports shared on this site - the variety of food sharing initiatives, performance and storytelling circles, maker spaces and innovative support systems\xa0- is informing\xa0my learning around\xa0this subject.', u'entity_id': 553, u'annotation_id': 5094, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'At the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I \'m trying to solve the problem with an idea called "smart boxes" (difficult to explain at the moment). I don\' t know if there\'s something out there that can help. This is why I\'m here...', u'entity_id': 17482, u'annotation_id': 5093, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u'If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we\u2019re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.', u'entity_id': 521, u'annotation_id': 5092, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'Hi\n\nSome time ago, just before the OpenCare Project\'s start, I had tried to involve the LEDHA (http://www.ledha.it/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of "WeHandU". I believe that the proposal to Rune can actively engage these people.\nOf course I agree on the role of WeMake as a reference point and work space! : D', u'entity_id': 29072, u'annotation_id': 5091, u'tag_id': 147, u'entity_type': u'comment'}, {u'quote': u'We come together to find out how networked humans can better take care of each other.', u'entity_id': 5260, u'annotation_id': 5087, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'But conversations are networks also in another sense: each exchange contains some concepts. Example of concepts useful in care are: well-being, syringe, diabethes, fitness, prosthetics, etc. We can represent concept in a conversation as a network. Concepts themselves are its nodes; two concepts are linked if\xa0they are in the same exchange.', u'entity_id': 5260, u'annotation_id': 5086, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'Care happens in networks.\xa0People take care of each other. They seek advice, medical help and moral support from each other. They exchange knowledge and share resources. They meet, interact, and work together.\xa0And, of course, no human can live well if he or she disconnects from the fabric of society at large (in recent times, care also happened in big bureaucracies, but that approach has issues. Here we look for something better).', u'entity_id': 5260, u'annotation_id': 5085, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you\u2019d like to give me a tip, share an idea, help me prepare the tour - leave a comment.', u'entity_id': 740, u'annotation_id': 5090, u'tag_id': 147, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 5026, u'tag_id': 138, u'entity_type': u'comment'}, {u'quote': u"Right on @Noemi :-). The article\xa0made me reflect on two different associations:\n1.\xa0Often we (technicians) get carried away by fascinating possibilities of\xa0technology. Tech becomes interresting in it's own right rather than a means to solve a specific problem and @Moushira\xa0has a good start on that. Sometimes it even creates new health problems. Here the\xa0the mouse as a modern a health hazard comes into mind (it's provoking RSI,\xa0Carpal tunnel syndrome etc. simply put:\xa0wrist problems). It's easy to imagine similar issue", u'entity_id': 16244, u'annotation_id': 5027, u'tag_id': 138, u'entity_type': u'comment'}, {u'quote': u'Can we improve life conditions, and how? A fundamental question is: do we meet the \u2018clients\u2019 needs?', u'entity_id': 516, u'annotation_id': 5028, u'tag_id': 138, u'entity_type': u'post'}, {u'quote': u'Have seen good examples of "care villages" elsewhere, especially designed to deal with dementia and Alzheimer\'s cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused\xa0society.', u'entity_id': 26047, u'annotation_id': 5104, u'tag_id': 148, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 773, u'annotation_id': 5135, u'tag_id': 150, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 5134, u'tag_id': 150, u'entity_type': u'post'}, {u'quote': u'Thanks for sharing the links, from the ministry\'s communication I picked up on something new: "The question of women\'s employment is thus closely linked to the question of the social organization of care work" So the risk is that the more care work you do around the house, the more you risk being paid\xa0less because of inability to take up fulltime work and provide for yourself at an old age..?\nOn the other side,\xa0unpaid care\xa0work it\'s somehting many of us do in our lives - out of love, pleasure, even a sense of\xa0duty as Alex pointed out in his story of refugee\xa0volunteering. For a lot of people care - and I\'ve seen older generation women in my family, care is indeed something they "can\'t switch off" from because it is where they find meaning in their lives.\xa0After retiring, they, and not their husbands were the ones who were able to take on paid care roles (eg caring for small children) as those skills remain valued at an old age. Indeed underpaid, and yet the only surplus income in the family.\xa0\nDo other policies like paternal leave work in Germany? In Romania it\'s currently at only 10% of fathers taking it', u'entity_id': 17209, u'annotation_id': 5133, u'tag_id': 150, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14231, u'annotation_id': 5132, u'tag_id': 150, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 749, u'annotation_id': 5131, u'tag_id': 150, u'entity_type': u'post'}, {u'quote': u'The need to understand young people\u2019s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or \u201ccare for the living\u201d. In other words, despite social workers and counsellors preaching the value of \u201ccare chains\u201d, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.', u'entity_id': 548, u'annotation_id': 5130, u'tag_id': 150, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22549, u'annotation_id': 5129, u'tag_id': 150, u'entity_type': u'comment'}, {u'quote': u"Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.", u'entity_id': 7782, u'annotation_id': 5128, u'tag_id': 150, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20496, u'annotation_id': 5127, u'tag_id': 150, u'entity_type': u'comment'}, {u'quote': u'The project is inspiring in its own right, but what makes it even more important and intriguing, is the fact that it is further linked with the efforts to create a new, fair and solidarity economy on a larger scale. Having such a vision, the group of refugees and solidary comrades that are supporting them on this, have built a collaborative network between the cooperative R2R call center and cooperative grocery stores in the area of Thessaloniki, where the refugee operators of the call center can cover most of their food and other basic needs, using a digital, alternative currency that is called Faircoin.', u'entity_id': 792, u'annotation_id': 5141, u'tag_id': 154, u'entity_type': u'post'}, {u'quote': u"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can\xa0choose to 'bind' their room to a specific cause, donating most of the returns\xa0to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?", u'entity_id': 23131, u'annotation_id': 5197, u'tag_id': 193, u'entity_type': u'comment'}, {u'quote': u'Engineering meets biomatter. The squiggly squishy, compliant bits of biomechanics allow you to produce one size fits all. If someone has physical disability, like cerebral paulsy, giving them a little bit of improved mobility can have huge positive effects.\n\nFunctionally grated structures:\xa0Inspired by Bird beaks: Hydrophobic proteins and high water content parts of the body.\xa0\n\nExample where functional grating is applied: Cerebral palsy\n\n\nCost of therapy is very expensive because one on one time with specialists are very costly, and tech used is not modifiable.\nso they build soft exoskeletons for actuators (for joints) using functional grating principles. Check out their "Neucuff"', u'entity_id': 5136, u'annotation_id': 11990, u'tag_id': 194, u'entity_type': u'post'}, {u'quote': u"I had to re-read the post because I didnt understand at first whether this new super original\xa0type of health workers would train to become\xa0personnel, or it would be a training that is more alternative medical\xa0practice.\nI'm curious how freelancing works and if it is easy to become a temporary caregiver \xa0in a hospital, clinic, or other medical facility with this certification? @jesslockhart \xa0I think @jahn here was just reporting on the story, but maybe he knows the team personally to send your offer to them? That's very kind of you to come up with a design idea!", u'entity_id': 20593, u'annotation_id': 5198, u'tag_id': 195, u'entity_type': u'comment'}, {u'quote': u'no requirements', u'entity_id': 39328, u'annotation_id': 11633, u'tag_id': 199, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22549, u'annotation_id': 5219, u'tag_id': 208, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22549, u'annotation_id': 5218, u'tag_id': 208, u'entity_type': u'comment'}, {u'quote': u'without receiving any direct pay', u'entity_id': 39328, u'annotation_id': 11655, u'tag_id': 233, u'entity_type': u'post'}, {u'quote': u'One of the most schizofrenic thing about medical treatments is, in my opinion, controversial advice. I always tell myself that the moment I will have a real condition I will need to ask for many many opinions in order to be satisfied with recommendations.\xa0Even with the "healthy food" trends which\xa0you remark, it is becoming harder and harder to find truth or specialists with real credentials. If hospital dieticians are in the wrong, then the only way seems to be more access to information, and\xa0at some point the more accurate one\xa0is filtered in.\nI like your approach, and maybe reading about other online communities could be useful to\xa0your design: for example another edgeryder in Benin is running awareness raising for cardio vascular diseases\xa0on a massive facebook group, but the reason they manage to keep it relatively uncontroversial, as far as I understood, is that: 1) they don\'t deal with curative or palliative care,\xa0only preventative and 2) they have moderators ensuring a healthy and accurate stream of information. This is their story.\nAlso, how can we help?', u'entity_id': 16818, u'annotation_id': 5391, u'tag_id': 297, u'entity_type': u'comment'}, {u'quote': u"So I have to simultaneously convince a patient of the soundness of the medical approach as a whole and of my own competence - when they may be used to thinking in terms of trust in the system and not the individual.\nThis is why I was keen to have patients provide some of the impetus for engagement themselves - if they waver in their trust of me or the medicine there is no institutional push for them to remain in treatment as there is in mainstream medicine.\nBut evidently part of keeping them engaged is providing that sense of medical authority that they want.\nSo now I'm thinking about how I can generate the kind of reassuring authority I need without falling into the established patterns of power relationships we are used to in the west.", u'entity_id': 18817, u'annotation_id': 5390, u'tag_id': 297, u'entity_type': u'comment'}, {u'quote': u"I enjoyed reading your well written post @steelweaver ! I have a rich medical history and although I had a brief run in with acupuncture, I never really went for it. I'd still like try it out\xa0when the opportunity presents itself.\nIt's an interesting remark on the authority of health practitioners @steelweaver and @Noemi . I think the reliance on\xa0guidance by an expert\xa0is in large part\xa0the result of the patients\xa0not being as familiar with acupuncture\xa0as the expert. Yet patients\xa0are there for a reason: at some level, they believe in\xa0the positive potential of the treatment. This common\xa0belief of both parties is the base for authority and\xa0lends you, or the practitioner, as an expert the authority to give direction. Authority governs the interaction and when nobody (or nothing) assumes it, confusion arises. To be clear:\xa0authority is different from power.\nI can complement this with my personal experience in the standard healthcare system in Belgium. For a little over 5 years I had a series of serious physical afflictions, which didn't ever seem to heal or resolve themselves and only got worse over the years. At the start I always\xa0left the clinic with a smile, which\xa0always disappeared in days, weeks or months as the situation deteriorated again. I experienced first hand that I was just\xa0a number, and that treating symptoms is faster and\xa0easier. Good thing for pharma companies, because endlessly treating symptoms sells more drugs.\xa0Finding the real cause takes longer, is harder and is more expensive, at least in the short term.\nI got pretty skeptical about the system by going from doctor to doctor and spending more time in physiotherapy than with my friends or family. Gradually I lost belief in the system. It was\xa0after I ultimately found the cause and cure (very simple ones at that) that whatever remained\xa0of my belief vanished.\xa0With that\xa0gone, there was no more common belief between me and the doctor, so the authority vanished. My language can't hide\xa0it: I found the\xa0solution, not a doctor or a system.\xa0For this specific\xa0illness, I will not lend authority very easily anymore either.\xa0I'm lucky, as I have a general idea of healthcare through my studies\xa0and know my body well by now, but this is clearly problematic for the general population when you hear similar stories with unhappy endings.\nAlso interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted).\xa0I think that might be a western thing, linked to what\xa0surfaced in the discussions with @alkasem23 about differences in care with Syria:\xa0in the west we put our trust in and rely on systems rather than other people. In some\xa0other cultures,\xa0people probably put their belief mainly in a person, the doctor.\nEasier interactions through\xa0the internet,\xa0powerful search engines,\xa0a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't\xa0always provide\xa0correct information, these factors also\xa0lead people to challenge the authority in terms of knowledge\xa0of the practitioner in the classical doctor's office. I\xa0think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare.\nImportantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of\xa0experimentation with new methods in the stories here on Edgeryders\xa0share some sort of\xa0community aspect. This\xa0illustrates a shift to lending authority to a\xa0collective rather than a system or a person. The\xa0collective can consist\xa0of patients, doctors or other caregivers and is likely\xa0a mixture ideally. In Syria the collective is mainly the family, according to Alkasem.\nLooking through this lens\xa0of authority\xa0is interesting and can be applied to many aspects of our\xa0daily lives.\xa0The matter is fresh in my head from a Dutch book I just finished reading, which I hope\xa0gets translated\xa0to English. If anyone is interested:\xa0the book builds on work by Hannah Arendt that\xa0you can certainly find", u'entity_id': 18779, u'annotation_id': 5389, u'tag_id': 297, u'entity_type': u'comment'}, {u'quote': u"I agree with all your proposals, but I was talking about alternative families for hetero people, people who are attracted to the opposite sex, but didn't meet yet the right partner.\n\nThese people can't use the same sex marriage solution.\n\nFriends are great if they are friends for life. But how can you actually make them stay\xa0 for life...because friends might decide one day to build their own family, so at that point they will be less present ...\n\nHow to make it work ?", u'entity_id': 13066, u'annotation_id': 11993, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 5401, u'tag_id': 298, u'entity_type': u'post'}, {u'quote': u'I think we are going to see a shift towards the generations recombining inoto\xa0households and compounds in the coming years. \xa0The "generation gap" that very much existed for my generation and my parents was, and still is in a way, much greater that what we see with my gernation and my kids. \xa0I have four kids, all well into adulthood. \xa0Two of them let me know regularly that they are open to us combining households in later years. \xa0Getting my own mother to agree to such a thing with me or my brothers is like pulling teeth.', u'entity_id': 23372, u'annotation_id': 5400, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'I wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about\xa0children moving\xa0away to become independent is true, and so living\xa0with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..', u'entity_id': 15792, u'annotation_id': 5399, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'the core family concept has been broken down - after uni and growing up you have to support yourself; so there is no glue which keeps family together', u'entity_id': 790, u'annotation_id': 5398, u'tag_id': 298, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 23384, u'annotation_id': 5397, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14850, u'annotation_id': 5396, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 13152, u'annotation_id': 5395, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 12845, u'annotation_id': 5394, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11006, u'annotation_id': 5393, u'tag_id': 298, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 5392, u'tag_id': 298, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 5403, u'tag_id': 300, u'entity_type': u'post'}, {u'quote': u'This made me think of trying to change the context of the concept and switch to scenarios such as the activity of ONGs like Doctors Without Borders, or thinking at care issues\xa0in\xa0refugee camps on European soil\xa0at this present day.', u'entity_id': 33771, u'annotation_id': 5404, u'tag_id': 301, u'entity_type': u'comment'}, {u'quote': u'Again, I do think we need to start thinking about things in terms of the housing we are building. We can\'t just keep building homes for young families or "trendy" flats for young single people. We need to seriously consider social housing, mixed communities, purpose-built homes for the elderly, etc. Mixed housing should be mandatory for large-scale new build schemes, and not just a tiny number of "affordable flats" that the developer can negotiate to build in a completely different city (as is happening now in the UK!). Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn\'t really be interested in.', u'entity_id': 29962, u'annotation_id': 5409, u'tag_id': 302, u'entity_type': u'comment'}, {u'quote': u"Sizes of residential housing is also an issue. Many people now buy new-build houses with small rooms and little extra space compared to older homes, hence there isn't always the capacity to bring in an elderly relative. Again this comes back to the issue of housebuilding, supply and demand, selling off of social housing, developers maximising profits by building small homes on greenfield sites whilst ignoring the many brownfield sites or old, disused homes that could be brought up to standard... Nothing in this world is disconnected!", u'entity_id': 27817, u'annotation_id': 5408, u'tag_id': 302, u'entity_type': u'comment'}, {u'quote': u'Thanks Zazie, I appreciate your note of caution. I have heard this from others I have spoken to, and am not about to leap into something blindly. On the other hand, it is clear that a radical shake up will be needed over the coming years so thinking creatively will be desperatley needed. This may include, among other thnigs, challenging the way the CQC thinks and operates.', u'entity_id': 27642, u'annotation_id': 5407, u'tag_id': 302, u'entity_type': u'comment'}, {u'quote': u"The question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community", u'entity_id': 759, u'annotation_id': 5406, u'tag_id': 302, u'entity_type': u'post'}, {u'quote': u'They are taking a different approach in asking how to create environments which are \xa0\xa0\xa0inclusive by design and not by label.\nSomeone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them.\xa0They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This\xa0allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.', u'entity_id': 8631, u'annotation_id': 5405, u'tag_id': 302, u'entity_type': u'comment'}, {u'quote': u"So here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies?\nAnother example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don\u2019t think otherwise to begin with.\nCould it be that some of us\u2014people without physical disabilities\u2014think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people\u2019s opinion.", u'entity_id': 694, u'annotation_id': 5410, u'tag_id': 303, u'entity_type': u'post'}, {u'quote': u"@Noemi\xa0 I'm not hugely familiar with the context- I think @Gehan was referring to in the context of the Art of Hosting work- but here is an article from the originator of the concept, I believe, Dee Hock: https://thesystemsthinker.com/the-nature-and-creation-of-chaordic-organizations/\n\nAnd here is a useful page on the P2PF wiki:\n\nhttp://wiki.p2pfoundation.net/ChaordicOrganizations_-_Characteristics\n\nQuote: Chaordic organisations are:\n\n\u2022 Are based on clarity of shared purpose and principles. \u2022 Are self-organizing and self-governing in whole and in part. \u2022 Exist primarily to enable their constituent parts. \u2022 Are powered from the periphery, unified from the core. \u2022 Are durable in purpose and principle, malleable in form and function. \u2022 Equitably distribute power, rights, responsibility and rewards. \u2022 Harmoniously combine cooperation and competition. \u2022 Learn, adapt and innovate in ever expanding cycles. \u2022 Are compatible with the human spirit and the biosphere. \u2022 Liberate and amplify ingenuity, initiative and judgment. \u2022 Are compatible with and foster diversity, complexity and change. \u2022 Constructively utilize and harmonize conflict and paradox. \u2022 Restrain and appropriately embed command and control methods.\n\nSounds very Edgeryders!", u'entity_id': 23370, u'annotation_id': 11994, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u"wonder if this phase\xa0can\xa0last for long enough that it becomes somewhat a given\xa0and acknowlegded in\xa0the organisational culture - that would make people working on-and-off feel more at ease and able to find a role that is creative and autonomous instead of coping for the larger part I guess time is of essence, and communicating the best we can.\xa0\nLater on, organisation growth comes with its own (and other) strings attached which can easily compromise out-of-the-box creativity levels. Maybe this is a useful framework to bring about at the session on organisations'\xa0sustainability, governance.", u'entity_id': 18597, u'annotation_id': 5416, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u"It talks about the different qualities of chaos and order. On both sides is death - left of chaos, complete break down - to the right of order death through stagnation. Chaos is creative\xa0but the paint never dries, it's impossible to form anything lasting. Order is the about maintaining, ryhthm, routine - it has its place.\xa0The overlap between chaos and order is the most productive space for innovation and emergence. I think its useful because it's about considering what's needed in any given situation.", u'entity_id': 18142, u'annotation_id': 5415, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u'Conversations over the first month have helped to refine the theme from how I\u2019d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors\xa0that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots\xa0care initiatives. They will help to define the \u2018microclimates\u2019 that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the\xa0more disbursed ecology of care called for in response to\xa0growing health needs.', u'entity_id': 6462, u'annotation_id': 5414, u'tag_id': 1984, u'entity_type': u'post'}, {u'quote': u"Its an idea I came across through Art of Hosting that I found useful (though other AoH methods made me feel a bit 'spiky')", u'entity_id': 18142, u'annotation_id': 5413, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u'Nice way of putting it.. I assume it refers to the non-linearity and coping with complexity which Gehan mentions. Feel free to expand on that - it will help those of us primarily tasked with infusing some sense of orderly process around here', u'entity_id': 18134, u'annotation_id': 5412, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u"And I remember that conversation about the 'poli-words', and also of the need to capture insights, spontaneous sharings and maps of meaning that come up in informal contexts, in conversations among friends, that can often be ephemeral if not documented: I recall we had a good conversation after an Edgeryders community call some weeks ago where we found the words to express things better after the call had ended- I remember a great riff you had about 'chaordic' ways of working.", u'entity_id': 16896, u'annotation_id': 5411, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u"what I've taken from it also relates to the point about burn out. The space between chaos and order is what to cultivate to innovate. But we don't what to expend our energy reinventing the wheel. When we have found stuff we want to maintain - shift it a little to the right - find routines and rythms - sustain it. Like a bike - if its working you want to maintain it. You don't want to be designing new components constantly.\xa0\nThis is also a high octane space, it can be fast. We need to enter it to create new and innovative stuff but it is also exhausting.\xa0\nHow does that land?", u'entity_id': 19042, u'annotation_id': 5418, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u"Thanks for those visuals @Gehan ! Makes it pretty clear. We are constantly in the zone between chaos and order, now transitioning more to the right. But we will keep a piece in that innovation zone, it's important not to let all the paint dry. Or it's death by boredom for us.\nI'm a fan of using this framework for something more", u'entity_id': 19020, u'annotation_id': 5417, u'tag_id': 1984, u'entity_type': u'comment'}, {u'quote': u'I agree with you about the projects. Studying crowdfunding and charity there are some rules that help: people like "successful" initiative (the achievement of a specific goal that adress a specific need), to produce a somehow quantifiable contribution (for this reason the pledge should be done directly by the users) and to have some choices (this reinforce engagement part).\nI think also this model would help us to involve smaller organizations that could be more willing to support the promotion activity for fairbnb.', u'entity_id': 25049, u'annotation_id': 5423, u'tag_id': 305, u'entity_type': u'comment'}, {u'quote': u'It is a beautiful way of reaching out to the world and letting people know how , living in a confined environment(camps) can be challenging.If we are \xa0our brothers and sisters keepers, then we will make out time from our very busy schedule to donate and help millions in those camps. He cared enough to share this story, so please y\'all, return the favor by giving whch will go a long way of changing a life. " sharing is caring", Giving is transforming and investing in other peoples lives.The best investment, is in the life of another human being. Thanks for sharing', u'entity_id': 27821, u'annotation_id': 5422, u'tag_id': 305, u'entity_type': u'comment'}, {u'quote': u'The poor celebrate double in our holidays because of a race for\xa0goodness, because the concept of "Eid"\xa0in the perception of Islam linked to "Zakat"\xa0which is basically the process of cleansing the money by giving the poor his legitimate right of the money which is 2,5 percent of annual profits in secret.\xa0If there is no secrecy Allah does not accept it .', u'entity_id': 797, u'annotation_id': 5421, u'tag_id': 305, u'entity_type': u'post'}, {u'quote': u'In Syria we have an \u2018islamic solidarity\u2019 in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven\u2019t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship. \xa0We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.', u'entity_id': 790, u'annotation_id': 5420, u'tag_id': 305, u'entity_type': u'post'}, {u'quote': u"This story of mine only wanted to come out through an interview carried out online by Noemi. Hopefully it gives you a peek inside the very personal experience of being part of a sort of grand thing \u2013 a network of people becoming active in the healthcare provision chain and caring for each other despite not having met. \xa0\n\xa0\nNoemi: Introduce us to the time when the cytostatics network came about. Was someone ill able or unable to access treatment from healthcare providers? How did they go by?\nSabina: It was the fall of 2009 when it all started for me: the dizziness, the fatigue, trouble breathing, walking, doing\xa0 basically anything. In October, I just put it on my crazy life style: mother of two, finishing the PhD, teaching at the Music University.\n\xa0In November it was clear something else was going on. So I went to a private lab- the thought of a state hospital was too scary- and had a blood work done. Except it did not work the usual way: the results could not be read due to a strange characteristic of the sample.\nI knew it was a bad sign, so I turned to my adoptive grandmother, dr. Mirjam Bercovici. She figured it out in minutes, wrote me a recommendation letter and sent me to a real hospital. Autoimmune Hemolytic Anemia \u2013 a very rare blood disease- was confirmed and three years of fighting it in Romania and Austria followed.\nHow did she know and how does this relate to the problems of cytostatics in Romania?\nFor many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country.\nSo when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was.\nDuring my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was \u201clucky\u201d: only had to buy once dexamethason\xa0for myself, but they were not so lucky:\xa0 either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with \u201dthe dossier\u201d), either they had to figure out how to obtain certain medication themselves.\nBut two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment\xa0 reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn\u2019t.\nWas anyone inside hospitals listening or fighting back?\nThe situation was rather strange. The drug was expensive, not approved for my AIHA, but\xa0available in theory. My roommates\xa0 with Lymphoma could get it based on the dossier (so not standard). But they were missing other drugs, cheaper cytostatics like Bleomicin, compensated 100% from the state! It was like in the times when Mirjam Bercovici was active, all over again. Like nothing had changed in 40 years. Frustration was working both sides, because treatments sessions were postponed, sick people and doctors being equally worried.\nAll I knew was that doctors advised patients to figure out how to get the drugs. I had no idea how the people got it, as I was preoccupied with my own, at that time unsolvable, health issues.", u'entity_id': 517, u'annotation_id': 5424, u'tag_id': 306, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 781, u'annotation_id': 5426, u'tag_id': 307, u'entity_type': u'post'}, {u'quote': u'I think it would be great to work with schools and underserved kids! Fly fishing is based on using flies that duplicate the insects and bait fish found in bodies of water. By understanding and looking at the fauna found in local streams and by discussing the fragility of that environment, student can make connections between their actions and how government and industrial actions affect their local bodies of water. It is important to make a connection between the students and their environment. This can be done by simply walking into a stream and turning over some rocks to see what is clinging to it.\nfly casting and tying flies are other activities that can be done to connect to this. There is a Royal Casting Club in Brussels plus other organizations that\xa0could help us with these activities.\nMore activities is also possible to link to other schools through Zoom and Hangout.', u'entity_id': 28454, u'annotation_id': 5431, u'tag_id': 308, u'entity_type': u'comment'}, {u'quote': u'As I mentioned, we provide a three day conference here in the States called "Children in the Stream Conference" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to "hook" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young\xa0 age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here\'s an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).', u'entity_id': 26938, u'annotation_id': 5430, u'tag_id': 308, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 781, u'annotation_id': 5429, u'tag_id': 308, u'entity_type': u'post'}, {u'quote': u'a lot of positive and good examples\nWhat do you think about\xa0interactive workshops, psychologists, educators and sociologists playing with children so they can\xa0 adopt essential ideas that no one should mistreat them, that they should report any form of violence, when they grow up won`t allowe\xa0bad behavior in the name of\xa0love, oppression or degrading treatment from society or be abuse and suffer because they are poor?', u'entity_id': 16621, u'annotation_id': 5428, u'tag_id': 308, u'entity_type': u'comment'}, {u'quote': u"I also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and\xa0is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend. \xa0Our son will be changing to a further\xa0specialised school closer to our\xa0home now. I have spoken\xa0with the principal\xa0and he is very interested some of the creative\xa0inclusive projects I have suggested,\xa0but the school has\xa0no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work.", u'entity_id': 716, u'annotation_id': 5427, u'tag_id': 308, u'entity_type': u'post'}, {u'quote': u'This article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.\xa0\n\xa0\n"Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies.\nWhen asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.\xa0\n\u201cWhat I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,\u201d says Aiken. \u201cI think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.\u201d', u'entity_id': 26054, u'annotation_id': 5432, u'tag_id': 309, u'entity_type': u'comment'}, {u'quote': u'Our goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages', u'entity_id': 828, u'annotation_id': 5433, u'tag_id': 310, u'entity_type': u'post'}, {u'quote': u'Our 18 guests from 13 European Cities were very interested and reacted with their own examples and some questions.\n\nThe representative of City of Porto for example, mentioned their project called \u201cBridge to the Future\u201d. They brought together elderly people, students, companies to discuss, understand and think solutions for elderly people problems. The best outcome would eventually be tested in a Shark-Tank like arena of investors, to pitch their core ideas. People asked if OpenCare has provided a budget also for prototyping. The EdgeRyders platforms rose interest in participants. Guests from France and Holland questioned if the platform was inclusive enough, given than it takes a degree of internet literacy to use it. Polish guests asked if, using English as a common language wasn\u2019t limiting. @Rossana_Torri and @Costantino provided answers and stimulated the discussions. The morning ended with a recap session where participants have been asked to provide a SWOT analysis of OpenCare. Results will be presented tomorrow in the morning session.', u'entity_id': 24477, u'annotation_id': 11996, u'tag_id': 311, u'entity_type': u'comment'}, {u'quote': u"The City of Milan is organizing a seminar on thursday 23th of February from 2pm to 5 pm at WeMake / Milan, in order to present Open Care to a network of civil servants from European cities. The event is part of a three days Eurocities' Study Visits focused on Social Entrepreuneurship.\n\n[The Study Visit detailed programme will be available asap].\n\nMilan has founded Eurocities in 1986 together with Barcelona, Birmingham, Frankfurt, Lyon and Rotterdam. The network today brings together 130 of Europe's largest cities and 40 partner cities, that between them serve 130 million citizens across 35 countries. Eurocities consists of a platform for sharing knowledge and exchanging ideas through six thematic forums, a wide range of working groups, projects, activities and events.\n\nMilan is taking part in the working group Social Affairs > Smart Social Inclusion, working out solutions to a better spending and for better social outcomes.\n\nParticipants in this working group discuss subjects such:\n\n\nHow to respond to reduced public spending and higher demand for social services, investing in a smarter and innovative way?\nWhat is the role of cities in promoting social entrepreneurship and social economy?\n\n\nParticipants will be invited from Municipalities of Acharnes, Amsterdam,\xa0 Antwerp,\xa0 Athens, Barcelona, Belfast,\xa0 Besiktas,\xa0 Beylikd\xfcz\xfc,\xa0 Birmingham,\xa0 Bonn,\xa0 Brno,\xa0 Bydgoszcz, Cardiff, Copenhagen, Dresden, Essen, Brussels, Gdansk,\xa0 Geneva,\xa0 Genoa,\xa0 Ghent,\xa0 Gothenburg,\xa0 Helsinki,\xa0 Katowice,\xa0 Leeds,\xa0 Lisbon,\xa0 Ljubljana,\xa0 Madrid, Manchester, Milan, Munich, Nantes, Netwerkstad, Twente, Newcastle-Gateshead, Nice Cote d\u2019Azur, Nicosia, Osmangazi, Ostend, Porto, Rennes Metropole, Riga,\xa0 Rome,\xa0 Rotterdam,\xa0 Sheffield,\xa0 Stockholm,\xa0 Stuttgart,\xa0 Tallinn, Turin, Turkish Cypriot community of Nicosia, Uppsala, Utrecht, Vantaa, Warsaw, Zagreb, Zurich.\n\nIf you are interested in taking part at the seminar feel free to send an email to milano_smartcity@comune-milano.org", u'entity_id': 6108, u'annotation_id': 11995, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u'http://paris.ouisharefest.com/schedule/\n"IN THE CONTEXT OF CURRENT POLITICAL TURMOIL, CITIES AND CITIZENS ARE AT THE HEART OF THE NEXT GREAT TRANSFORMATION."\nThere sees like lots of relevant connections to be made at this event. Is anyone going? Its not far off but I\'m considering it...', u'entity_id': 6440, u'annotation_id': 5451, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u"I recently randomly read this book http://www.goodreads.com/book/show/13086.Suburban_Nation that I suggest often and that gave me a much deeper knowledge of suburbs.\nFor the countryside, I think that the tendency of the people from this places to go in the major cities could be reversed (especially in Italy) since cities don't represent any more a place of opportunity.\nThis is a much broader argument, but I hope that the platform that we are building could help to experiment new models to solve problems related to this places.", u'entity_id': 25049, u'annotation_id': 5450, u'tag_id': 311, u'entity_type': u'comment'}, {u'quote': u'people.\nThat\u2019s why we asked ourselves:\nHow may we shape a relevant and unifying image for this area?', u'entity_id': 26067, u'annotation_id': 5449, u'tag_id': 311, u'entity_type': u'comment'}, {u'quote': u'Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people\u2019s caring and collaborating capabilities and doing so, creating new forms of care-related communities.', u'entity_id': 832, u'annotation_id': 5448, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u'\u201cLocal authorities are no longer perceived as the only party expected to solve complex issues in cities\u201d (source)\nThis post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens.\nLiving Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people\u2019s relationship with city officials.', u'entity_id': 33746, u'annotation_id': 5447, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u'@Alberto gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and caf\xe9s. Still we have collect more but this will happen as soon as we get it expanded. We work on it.', u'entity_id': 16457, u'annotation_id': 5446, u'tag_id': 311, u'entity_type': u'comment'}, {u'quote': u'Our App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Caf\xe9s and Eventspaces be a part of our project. So for example we lead a participant to a caf\xe9 and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience.\nSo our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment.\nMilan/Newcomer', u'entity_id': 699, u'annotation_id': 5445, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u'From Maison Du People to Huis VDH, a story about citizen centred design.\nSince I was a guide and learned about the architect Horta and his Art Nouveau Style, I\u2019m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks\u2026\nI gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn\u2019t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented.\nSo there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born.\nIt\u2019s all in the name, for Huis VDH it is no other. \u2018Huis\u2019 means \u2018home\u2019 in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: \u201c that the power of a community is bigger than the sum of all parts.\u201d\nOne big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.', u'entity_id': 520, u'annotation_id': 5444, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u'city', u'entity_id': 521, u'annotation_id': 5443, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u'The city as a place and institutions is where all of these interactions and relationships live (or do not). Can Lucia and Rossana and others in the city of Milano help us understand how a city can make visible and enable promising approaches and nurturing the people who drive them?', u'entity_id': 5479, u'annotation_id': 5434, u'tag_id': 311, u'entity_type': u'post'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.", u'entity_id': 863, u'annotation_id': 11998, u'tag_id': 1986, u'entity_type': u'post'}, {u'quote': u'I did my thesis on correlations between phenotype characteristics and seed yield (+ genetic diversity) in red clover. I know first hand the horrors of measuring the size of 10.000 tiny flowers, tagging genetic barcodes and the weeks of zombie computer work this brings. Luckily, research institutions have students and interns to do this stuff . You make a very valid point: phenotypic research can benefit a lot from citizen science.', u'entity_id': 18972, u'annotation_id': 11997, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u'The government support I am talking about here is : policies to frame community-science action ; encourage the broad adoption of these local initiatives inside the country. Only official communiqu\xe9 can change the life of many people. Then funding can be useful\u2026', u'entity_id': 37591, u'annotation_id': 11810, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u"In terms of what I specifically learned, I realised I never answered you here...  Because I really would like to get more people doing citizen science, and especially help them become aware of how easily we might be able to help our cells avoid too much damage, also for future generations, I guess one personal thing I (re)learned was how difficult it is to push ideas onto people directly.  Even if they seem very nice.  For one example, many times I would have liked to advice people to skip their cigarette break (since cigarette smoke not only can directly damage DNA but prevent its repair!), but I guess there was only one person that I even pointed this out to (very gently, I think)...  I believe people have an idea that there are so many bad things out there, that one more makes no big difference, and of course adults are allowed to make their own choices.  Nonetheless, I hope that if they could really understand 'why' such things are bad for us all, and the environment - based on this idea of 'dynamic genomic integrity' getting disrupted, things could change for the better... (here is the link to my public service association, http://www.genomicintegrity.org/  just in case someone would like more info in this regard.  The summary flyer btw is available already in 10 languages, but I would love to make more translations, and would also love more 'flags' to show up the site's counter...  I also want to point out to all the artistic people out there that the AGiR! Art Call is still open!!)", u'entity_id': 38966, u'annotation_id': 11721, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u"For a short time I was a science teacher in secondary schools. I even considered introducing the study of environmental chemistry instead of standard chemistry, but that didn't work out. But this kind of citizen science would bring great life to teaching, as well as helping adults take control of their own lives. I was fascinated by the citizen science aspect of the Festival as a whole.", u'entity_id': 38977, u'annotation_id': 11726, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u'These have been the issues of many open.citizen science projects, including ones I am involved in. Even beyond citizen.open science this is true. On June 28th we had a community call to discuss common threads across the themes at the festival. Focus points will be funding and funding policies and coordination overhead.', u'entity_id': 6459, u'annotation_id': 5462, u'tag_id': 1986, u'entity_type': u'post'}, {u'quote': u'Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.', u'entity_id': 6372, u'annotation_id': 5461, u'tag_id': 1986, u'entity_type': u'post'}, {u'quote': u'Bio lab and bio space. Open to public. Developing Educational non-profit in the community to push science education to under resourced groups. Helping researchers and orgs to communicate better with each other and public. Generally interested in sustainable models for running a physical community space.\nFor OpenVillage he is curating and looking for people to introduce projects on citizen science and open science, starting with the OpenInsulin global team which he is coordinating in Europe.', u'entity_id': 6360, u'annotation_id': 5460, u'tag_id': 1986, u'entity_type': u'post'}, {u'quote': u'What have we learned about having citizens define and help advance our research project?\nOur team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn\xa0and contribute. The sharing of knowledge and responsibilities\xa0within our group thus mirrored what we were seeking to support beyond the group.', u'entity_id': 859, u'annotation_id': 5459, u'tag_id': 1986, u'entity_type': u'post'}, {u'quote': u'THE PROBLEM\nFrom talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities\u200a\u2014\u200awe all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. \nFinding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to \u2018citizen science\u2019 at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.', u'entity_id': 6427, u'annotation_id': 5458, u'tag_id': 1986, u'entity_type': u'post'}, {u'quote': u'sounds like very good synergies are possible, @Winnie!\nI also thought it might be good to look at how others define citizen science recently... \xa0Here is one link full of links:\xa0http://www.instructables.com/id/A-Scientists-Guide-to-Citizen-Science/\nHappy Summer!!', u'entity_id': 20399, u'annotation_id': 5457, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u'What I am interested in when talking about communication is how it leads\xa0to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown\xa0of Ghent is pretty bad.\nIt might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or\xa0moneywise) aspect. Your work as an artist is potentially a\xa0great help.\nHas your work on making complex issues around\xa0bodies of water acessible somehow contributed to citizen-led research?', u'entity_id': 21041, u'annotation_id': 5456, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u'The story to inspire a citizen scientist or biohacker is different from the story to inspire a child. Moreover, DIYbio has had issues with public perception. We find it important that knowledge is spread equally and that everyone can participate in an open discussion. We would not like a distorted image to shape decisions and opinions of people, leading them to self-censor and potentially miss out on learning opportunities.', u'entity_id': 530, u'annotation_id': 5455, u'tag_id': 1986, u'entity_type': u'post'}, {u'quote': u'After reading @WinniePoncelet \'s thoughts, @Amelia and I thought to make this post part of the ethnographic coding. The role of citizens in citizen science \xa0is super-interesting, and it is part of a larger discussion on the role of communities in care, or any activity that involves "the crowd". @markomanka wrote in the OpenCare proposal that "the crowd is often considered a rightless volunteer". In science, citizens are only supposed to provide the data, but rarely process them or interpret them. In policy, they are supposed to be stakeholders and express desired and suggest ideas, but rarely to then execute them.', u'entity_id': 26661, u'annotation_id': 5454, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u'For example, citizen science as an approach is overwhelmingly commonly\xa0reduced to an alternative method for collecting data. A tool, not a different process. A way to collect data\xa0and involve people a little by doing so, rather than involving people in the whole process and having them collect data in addition to formulating questions, designing experiments etc. all along the way.', u'entity_id': 14733, u'annotation_id': 5453, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u'ransforming patients (or their closest carers) into makers is an interesting perspective. We know from citizen science that this first hands involvement often offers a stimulus to personal studies, and reflection about the identity of the problem, and the problem holder. One could argue this is an even more important potential benefit than the access to the devices in itself.', u'entity_id': 23523, u'annotation_id': 5452, u'tag_id': 1986, u'entity_type': u'comment'}, {u'quote': u'http://paris.ouisharefest.com/schedule/\n"IN THE CONTEXT OF CURRENT POLITICAL TURMOIL, CITIES AND CITIZENS ARE AT THE HEART OF THE NEXT GREAT TRANSFORMATION."\nThere sees like lots of relevant connections to be made at this event. Is anyone going? Its not far off but I\'m considering it...', u'entity_id': 6440, u'annotation_id': 5470, u'tag_id': 313, u'entity_type': u'post'}, {u'quote': u'This post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens.\nLiving Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people\u2019s relationship with city officials.', u'entity_id': 33746, u'annotation_id': 5469, u'tag_id': 313, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 5468, u'tag_id': 313, u'entity_type': u'post'}, {u'quote': u'It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.', u'entity_id': 716, u'annotation_id': 5473, u'tag_id': 315, u'entity_type': u'post'}, {u'quote': u'The city of Ghent (thanks to the European MUSIC-project) co\xf6rdinated the first year of thinking, dreaming and creating a strong group (see also https://drift.eur.nl/wp-content/uploads/2016/11/DRIFT-Transition_management_in_the_urban_context-guidance_manual.pdf) . Then the group organised themselves, with sponsorship money and a lot of volunteer time of the pioneers of the first hour.', u'entity_id': 33778, u'annotation_id': 5472, u'tag_id': 315, u'entity_type': u'comment'}, {u'quote': u'Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.', u'entity_id': 6372, u'annotation_id': 5475, u'tag_id': 316, u'entity_type': u'post'}, {u'quote': u"Most of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it's no problem and good examples will follow.", u'entity_id': 24534, u'annotation_id': 5476, u'tag_id': 317, u'entity_type': u'comment'}, {u'quote': u"I hope you will get the touring exhibition to have a european leg, and come through Lausanne! \xa0To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help!\n\nI left a comment with a few points this morning on the page with\xa0the documentary, but just to ask one more silly question: was it\xa0actually possible to do any fly-fishing on the Bagmati river?? \xa0(are there many fish to catch?? \xa0are they edible?) \xa0\n\nI did some flyfishing long ago in the great northwest and Montana, with great pleasure, but\xa0don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)...\n\nThanks again for sharing, and looking forward to further", u'entity_id': 21501, u'annotation_id': 12002, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u"Hi @iffat_e_faria. More green, more forests are beneficial to our health in so many ways. Taking joy of caring of them as @Noemi points out, taking a walk in the forest, cleaner air, better soils, more stable climates, more biodiversity, ... The list goes on.\n\nIn Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader.\n\nFive seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here's the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:", u'entity_id': 24340, u'annotation_id': 12000, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u'I would love @Mashrekur_Rahman to take a look at this. he is a scientist and acrivist dealing with climate change\xa0effects in Bangladesh, one of the hardest hit areas.\n\nI do not have a ready tip, but i am aure it is timr for us to prepare a climate survival kit for many countries in the global south. do you think it would make sense to spend some months next year building a dedicated section on the platform to address this issue? maybe we could travel somewhere to research, connect with locals and create a database like this collectively?\xa0\n\n@Matthias, @Alberto let me know what you think. i am back to europe next week and back to work as well. \xa0by work i mean edgeryders', u'entity_id': 14873, u'annotation_id': 11999, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u"Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.", u'entity_id': 863, u'annotation_id': 12001, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u'eg. If everyone is caring about climate change should be researching on that topic to re.appropriate and develop possible solutions; probably they are now doing something because it turns a trend ( and is money ) and looking for this perspective can be ok because is needed to act.', u'entity_id': 38478, u'annotation_id': 11835, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u'As I mentioned, we provide a three day conference here in the States called "Children in the Stream Conference" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to "hook" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young\xa0 age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here\'s an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/)', u'entity_id': 26938, u'annotation_id': 5498, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u'Alberto: artist, videographer; uses stories and video installations to make complicated i.e. environmental issues more accessible to the public', u'entity_id': 6372, u'annotation_id': 5497, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u"Based outside of Buffalo in NYC, artist, professor, flyfishing guide. Water and communities through arts projects. Worked in Kathmandu looking at the story of a river as one of the holiest bodies in Nepal. Pollution and importance. How do they come together. At OpenVillage hopes to forge links to build similar services to other groups. Making complicated issues more accessible. Bringing the stories and projects together and building a network of interest and potential clients for the same work - through exhibitions, publications, videos, documentaries.\nAt #OpenVillage he\u2019s interested to host\xa0a panel session on clean water, where invited experts speak and then open it to new people; problem is many are in Kathmandu and harder to get them to Brussels. Winnie: \u201cthere's an active subscene in DIYbio working on water quality. diy analysis methods, open source hardware. Will look up contacts in Lausanne, Switzerland\u201d", u'entity_id': 6360, u'annotation_id': 5496, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u'For the introduction, do you need something like "The Biological Regionalism Session discusses ways to use art as a way to introduce complicated environmental and health issues to a diverse audience"', u'entity_id': 15247, u'annotation_id': 5494, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u'For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).', u'entity_id': 6315, u'annotation_id': 5493, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u"Being a scientist and environmentalist from Bangladesh myself, I can appreciate the simplicity of your project. There are of course some challenges associated with it. However, it's a great initiative. Well done!", u'entity_id': 15576, u'annotation_id': 5492, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u"Hello\xa0@IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real\xa0strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which\xa0you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.\xa0\nI wish you all the best in your efforts.", u'entity_id': 8154, u'annotation_id': 5491, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u"On September 8th 2016, I have initiated an online campaign called \xa0#PlantAtreeChallengeBD\u201d The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It\u2019s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem.\nAlong with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.\nPrimarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each \xa0other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10.\nTo bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor\u2019s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO\u2019s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on\xa0increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first", u'entity_id': 848, u'annotation_id': 5490, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 775, u'annotation_id': 5489, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u"In 2014, I, Alberto Rey, had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800\u2019s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.\xa0 My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset while creating insafe health issues to underserved populations.\n It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth, a colleague at the State University of New York and a graphic designer, joined the venture early in 2016 and his work has been integral to the project\u2019s success. During Jason\u2019s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project\u2019s publications and the sales of my artwork.\n The Bagmati River Arts Project (http://www.bagmatiriverartproject.com/) includes exhibitions, lectures and a website that houses a project\xa0 overview, daily of blog of research in Kathmandu, sketchbooks, data, videos and links to the project's publication and documentary:\n \n  an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River and related health concerns in the area. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river.\n  \xa0a book ,Complexities of Water: Bagmati River, Nepal and Beyond, is a publication that will examine how the holiest river in Nepal became spoiled by decades of pollution and policies that did not address issues related to climate change. It\u2019s present condition is a result of is the result of government mismanagement and oversight, lack of concern for underrepresented communities who live along its banks, and extreme flooding and droughts due to climate change. Recent reports have ranked Nepal as one of the most vulnerable countries to climate change due to the high rate of urbanization, unchecked industrial development, severely low water supply, high pollution levels, increasingly frequent extreme floods and droughts, predictions of worsening conditions and lack of appropriate planning to mitigate or adapt to these conditions. Reports also list Nepal as an LDC (least developed country), which indicates its potential limitations to address these issues. This project hopes to bring international attention to this issue and hopefully some support to help provide finances to assist in addressing these issues.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 While examples of pollution and the effects of climate change can be found throughout Nepal, there is no better example of how bad the situation has become than what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river\u2019s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu\u2019s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/).\n  a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/).\n  a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster.\n \n All elements of the project listed above were finished and presented at the opening of the exhibition on November 20, 2016 at the Siddhartha Gallery in Kathmandu, Nepal.\n An exciting extension to this project is to have the artwork, publication, documentary, brochures and posters tour the United States and internationally. The Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition.Water issues are a worldwide concern and the Bagmati\u2019s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.", u'entity_id': 576, u'annotation_id': 5488, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u'Besides the food, there is a whole chunk of attention devoted solely to climate change. As @Pavlos\xa0said, since he was a kid he saw degradation all around - his little coastal hometown, in North-Eastern Greece, surrounded by olive orchards, was always the reference point of a good life in a good space. Seeing the country devastated by urban sprawl, beaches consumed by villas and bars, and people being happy about this, worried him since a long time. So, after receiving education in Scotland, Germany, and researching native tribes of China and Thailand, he didn\'t only come back to Greece to rethink its food culture. He also decided to work on the climate.\xa0\nPavlos is involved with climatetracker.org, an international team of young writers and quite possibly the biggest environmental youth movement of people from all around the world. These are decentralized and nonhierarchical groups led by activists in the Carribean, Europe, Latin America. They cover events in UN or COPs but also do investigative journalism on a local scale. Their work unmasks lobbies and harmful practices and has been published in key media across the globe. They also organize webinars and campaigns and often encourage writers to concentrate on a certain issue in a given period of time.\xa0\nAnd Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, "restoring the zombie economy", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?\xa0\nEven though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what\'s happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.\xa0\nThe Greek crisis has a side that not many people talk about - how would paying back the debt affects its environment. Pavlos believes paying off the money lent from the international institutions would create a huge ecological debt in terms of lack of sustainable land use and waste management.\xa0\nNow, as the demos has been neglected and their voice hijacked during the last referendum, it\'s time to accept, at least tolerate, widespread civil disobedience that will drive the movement. 62% that disagreed has been silent so far, but it will have to speak soon. Even more, what seems to be an alternative idea, is not alternative anymore there - it\'s the only way out. Greece is exploring the open data tools and sharing knowledge, prototyping new was of accountability, transparency, decision making. And here the health and care appear again. Pavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece. These are the ways in which delivering health care has changed, in which social organization has challenged the systemic shortcomings. From those experiments and pieces emerges a complex, wide image of more inclusive future. It is built on the exchange of ideas and practices in an open manner. It rethinks the way we deliver care in a more decentralized way, more concentrated on prevention. It reframes urban food systems by educating people on the impact of what they eat on their health. Contemporary lifestyle jeopardizes 50 years of development in the health sector - food related diseases, new viruses, climate change, they all have a huge, negative impact on the quality of our lives. Technology and science, accompanied by open data and sharing, can prevent disastrous effects of those phenomena.\xa0\nFinally, I asked how would he explain his entrepreneurial path to those opposing the market? He said a couple of things I find hilarious and worth considering. First of all, that activism is for city people - while he wanted to go back to his olive groves and do the farm life. Secondly, there is a dire need of changing the way people do business - in a sustainable way, with respect to diversity, with a different concept of what\'s valuable. It\'s not the price of land and potential golf courses, not the cheap fast forest. Thirdly, doing things like bread plates is not a rocket science - but if successful it points towards effective and regenerative entrepreneurship. Therefore, an entrepreneur doing such kind of work realizes the visions of an activist - by actually convincing a chain of restaurants to deliver local, better coffee or beer, by cutting off the middlemen. It means millions of people affected in a positive way. It takes a solid ethical concept and guts to take risks, but it pays off in many ways. And it fills the unemployment gap, which wastes the potential of a whole generation now. Interacting with the system is the way for Pavlos. And I really like the fact he\'s not used to failing.\xa0\nYou can read the first part of the article here:\xa0https://edgeryders.eu/en/transforming-food-systems-in-post-crisis-greece-conversation-with', u'entity_id': 704, u'annotation_id': 5487, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u'More than the half of the forest in my country has been cutted for combustion, furnitures, slash and burn,... Following population growth from 15 million to 20 during the last 30 years. Public health and sanitation are trying as they can and have to keep us healthy; with this growing population; open fire and carbonic gas are growing following this,\xa0carbonic gas from factories and cars... Nowadays, 80% of kids under 5 years\xa0seem\xa0asthmatic. I know that when I was asking the pediatrician in a pediatric hospital, where I brought my 3 years old nephew for lungs exam. For information, only few people who have enough money can afford treatment like aerosol "inhale", medicines,...', u'entity_id': 706, u'annotation_id': 5486, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u"And @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I'm following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it's carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let's be realistic for the near term", u'entity_id': 10812, u'annotation_id': 5485, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u'In 2014, I had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800\u2019s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.\xa0 My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset. \nIt was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. I was excited about extending my body of work beyond the Western Hemisphere and to working with a culturally diverse community. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in me starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth joined the venture early in 2016 and his work has been integral to the project\u2019s success. During Jason\u2019s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project\u2019s publications and the sales of my artwork. \nThe Bagmati River Arts Project\xa0includes:\nA. an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river.\nB. a book is being published (available in November 2016) that documents the importance of the Bagmati River, the cause for the pollution, climate change effects on the Kathmandu Valley and its groundwater, and plans to improve the condition of the river. The role of this publication, like the exhibition, is to use aesthetics as a way to make the scientific data accessible to a wider audience. Artists from the United States and Nepal will be included in the publication. The publication will be made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on this website.\nC. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website.\nD. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design.\nAll elements of the project listed above will be finished and presented at the opening of the exhibition in November 20, 2016 when Jason and I plan to return to Kathmandu.\nAn exciting extension to this project is the plan to ship the artwork, publication, documentary, brochures and posters back to the United States where it will tour around the country and, possibly, internationally. Water issues are a worldwide concern and the Bagmati\u2019s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.\xa0\xa0\nThe Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition.\nFor more information please contact alberto@albertorey.com.', u'entity_id': 752, u'annotation_id': 5484, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u'Wow, @Michel , this is really sad. Climate change looks really different from Madagascar, with 14 cyclones a year...\xa0\n\nI would not know, really, but I imagine that communities can help. Our friend\xa0@Nick_Davitashvili and the\xa0rest of the wonderful Guerrilla Gardeners in Tbilisi, Georgia, did many things to improve their city, and eventually led a massive effort to clean up after a flood had hit Tbilisi hard in 2015. Mention of the flood is at 19.00, but I recommend you watch the whole thing to get an idea of how they operate.', u'entity_id': 7745, u'annotation_id': 5483, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u'As', u'entity_id': 800, u'annotation_id': 5482, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u"As I mentioned in my article some of us still using woods and charcoal as a combustion. This inventory that @Matthias mentioned in Nepal looks great. It's can avoid a massive destruction of lives and nature.", u'entity_id': 20018, u'annotation_id': 5481, u'tag_id': 318, u'entity_type': u'comment'}, {u'quote': u'hey are as weak as we are, as evidenced by the effects of superstorms on the health infrastructure of New Orleans and New York. \xa0How can these institutions help us when the very air we breath is killing us? \xa0How do they help us adapt to a world without clean water?', u'entity_id': 521, u'annotation_id': 5480, u'tag_id': 318, u'entity_type': u'post'}, {u'quote': u"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that\xa0 get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)?\n\nIf I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and\xa0 3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based\xa0 research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?", u'entity_id': 23568, u'annotation_id': 5499, u'tag_id': 319, u'entity_type': u'comment'}, {u'quote': u'\u201cWe talked about the relationships that we have with people from Syria that we know and the experiences we have with them. We try to know why German people are so scared of foreigners and why the German people are sometimes so closed also in a friendship. For example my first time was not so easy to make friends here, german people are really closed the first time..they are not so open to stangers.\u201d', u'entity_id': 494, u'annotation_id': 5500, u'tag_id': 320, u'entity_type': u'post'}, {u'quote': u"But I am sure the subtle and not so subtle differences will start a lot of thought processes about things you've until now taken for granted. In Marseille I see quite different approaches to dressing and style whith street scenes looking quite different depending on day of the week or time of day. I find it quite interesting but don't spend much time on this myself.", u'entity_id': 18613, u'annotation_id': 5504, u'tag_id': 321, u'entity_type': u'comment'}, {u'quote': u"It\u2019s noteworthy that if we focus on specific issues we can come to interesting conclusions e.g. Public misinformation by \u201cofficial\u201d announcements that were based on internet searching or common knowledge about clothing. As a result, there was a shortage of A-shirts (tank tops) while, considered useless, thousands of used socks were gathered although it costs less to buy new ones. Also, acrylic socks were suggested as the most appropriate. But when there\u2019s no luxury of changing them anytime, other materials are more suitable like; wool, bamboo, cotton, tactel etc.\nObviously, a problem, arisen from common everyday items, is more complicated than initially thought and requires an expert's opinion.\nSo, without surprise, no one reached out to experts from the clothing sector for professional advice and assistance. Moreover both government and UNHCR ignored any proposals or contact efforts.", u'entity_id': 550, u'annotation_id': 5503, u'tag_id': 321, u'entity_type': u'post'}, {u'quote': u'I have learned to live with the dynamics, and I started helping out at Oikopolis, to create a clothing storage, explaining an internationally used methodology of inventorying, so refugees were able to serve themselves on their own. This system still works, where refugees can come, try and take the clothes they need for free.', u'entity_id': 737, u'annotation_id': 5501, u'tag_id': 321, u'entity_type': u'post'}, {u'quote': u'Due to my profession as a fashion designer and manufacturer, when I heard about all those calls for clothing needs I started wondering who will manage all these diverse supplies. When facing a disaster, food and medical aid are considered top priorities but it\u2019s not widely known that wearing inappropriate clothing under extreme conditions can become life threatening.', u'entity_id': 550, u'annotation_id': 5502, u'tag_id': 321, u'entity_type': u'post'}, {u'quote': u"Hi everyone!\xa0\n\nThis is my very first post here. I've been following the platform for a little\xa0while now (around 1 year)\xa0and I am still being\xa0amazed by your productivity and shared knowledge. I am currently working for Leeuwarden-Frysl\xe2n European Capital of Culture 2018 as part of the communication and marketing team, where I'm looking into setting up an online platform on which the communities surrounding our cultural programme can join forces and find eachother. This 'looking into' has developed into the subject of\xa0my bachelor thesis for the course Media and Entertainment Management.\xa0\n\nIn my research, I'm specifically looking into the interactions that take place on co-creative platforms and the dialogue between the organisation behind the platform and its users. Now, I know that with you guys\xa0the\xa0ownership of the platform itself is a lot\xa0more open than with\xa0a crowdsourcing platform such as, say,\xa0+Acumen or\xa0OpenIDEO. What you're doing builds more on the concept of open-source rather than crowdsourcing, and you're implementing it in every single part of your operation. Doing this with challenges that relate to\xa0society and that are produced because of an intrinisic motivation is very impressive! Most other platforms that try to achieve change or develop new concepts do this based on streamlined extrinisic motivations, such as Kickstarter's rewards or simply a cash prize for the best idea.\xa0\n\nThus, I would really like to use Edgeryders as a case-study for my thesis. I'm looking for at least two users of the platform to answer a few of my questions over Skype. The questions that I have are based on two models. Firstly, I am trying to find indicators for the quality of the interactions that take place on the platform based on the framework of Prahalad and Ramaswamy\xa0(2004)\xa0and, secondly,\xa0I am trying to create some insight into your overall co-creation activities based on a recent model of Malmelin and Villi (2015).\xa0\n\n\nScreen Shot 2016-07-06 at 17.27.49.jpg1042x910 160 KB\n\n\n\nScreen Shot 2016-07-06 at 17.21.22.jpg910x906 95.6 KB\n\n\nEven if you're not willing to be interviewed over Skype, it would be very helpful to me if you could describe how and why you are making use of\xa0the platform, and to which categories your\xa0activities on the platform\xa0fit or don't fit. Also, if you have any questions, tips, ideas, or remarks about everything I've told you so far or regarding the possible platform for Leeuwarden-Frysl\xe2n 2018, please let me know!", u'entity_id': 705, u'annotation_id': 12003, u'tag_id': 1988, u'entity_type': u'post'}, {u'quote': u'Community Conversations can have an impact in various ways, from discussing challenges, catalyzing collaborations or changing the direction of the project and creating new initiatives.\nThis was the case for Sara\xa0Savian\xa0and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.\xa0 It allows the patient to record and report exercises, data- such as hand position and fingertips pressure.\nIn 2014 Sara\xa0Savian\xa0and Mauro Alfieri started their journey with a \u201ctest on sensors \u201cand they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.\xa0 The intent was to explore how it can be used? How can it add value and be of use socially?\xa0 What could be built on this foundation? These discussions could change the course for many participants.\nSara and Mauro not only had many questions answered, but they left with the idea of going back to the drawing board and creating something that would be beneficial to society.\nA conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can\u2019t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.\n\xa0We asked Sara to recollect this conversation:\nJohn: "I suffer from a hand disability that limits my activities of daily life. Self-sufficiency is greatly reduced and hinders the quality of life for me. Constant monitoring of my movements and joints must be done frequently to evaluate my progress by and going back and forth as an outpatient for evaluations. This interferes with my daily activities\u201d*\nPhysiotherapist: \u201cThere has been an advancement in technologies in the rehabilitation to help patients achieve maximum recovery outcomes. In Italy, physiotherapists have no access to digital tools to evaluate rehabilitative progress for hand movements. Having instant access to this therapy anytime would be greatly beneficial.*\nWe asked Sara and Mauro how this conversation altered the course for reHub.\nSara: \u201cThis made us re-evaluate our project in a variety of ways and prompted us to think in broader terms and combine the "test on sensors" with solving a problem. We know that there is a lot of learning that needs to be done when you put the device in the hands of people that are just things you would not expect".\xa0\nMauro: From this discussion, Sara and I saw the opportunity offer a solution and an experience of an emerging area of wearable technology together with the sensing technology and decided to create a device that could be delivered in a rehabilitation approach to support patients\u2019 and to monitor hand rehabilitation. From listening to challenges that are faced on a daily basis, and realizing how painful it is for the patient and family. We need to work with them to help co-create with us\u201d.\nWith the project in its early stage, Sara wanted to share this:\nSara: \u201cThere is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.\u201d\nWe asked what\u2019s next for reHub.\nSara: "We know that rehabilitation is time-consuming and demotivating and we plan to change that with a reHub device to empower patients through their therapy. Rehabilitation is often costly, by making it open source, it\u2019s affordable and accessible for people who are living with limitation and this could drastically improve their mental well-being during the road of recovery\u201d. This will allow the vast majority of patients to be sent home with a rehabilitation program to practice on their smartphone or tablet."\nThe reHub team is taking a broad approach in this area and looking for users and a community that will benefit and help develop different options: sport, gaming, educational, medical.\nWhy is it important to work with the community to further develop reHub?\nSara: "Spending time with a community, or patients that will benefit from what you\u2019re creating is looking at the problem in a human-centered way and it highlight\u2019s what\u2019s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we\u2019re back to the drawing board. We need to know what from the user\'s perspective so we can design with them in mind."\nCo-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily. \xa0When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented.\nMauro Alfieri: \u201cWe thank all the physiotherapists we have had a chance to meet with \xa0which could effectively confront the future of this project, orienting it to a continuous use in proprioceptive physiotherapy."\nIf people can\u2019t achieve expected results due to a design issue or flaw, then that\u2019s obviously going to have a clinical impact. From a functional aspect, understanding how people use things does matter. This is where engineering, design and the community will benefit and need to work hand in hand to understand these components. It\u2019s crucial to consider human emotions when designing medical products. Often, it\u2019s the emotional connections that people have with respect to the design. Is it flexible? The weight, how it feels, is it aesthetically appealing?\nThen, of course, cost and accessibility that make people gravitate toward certain devices as opposed to others. With the joined forces of diverse backgrounds of Sara and Mauro, reHub will be addressing all these concerns.\nreHub-goal-oriented effective rehabilitative treatment and experience that will help patients return to family, job, community and resume regular daily activities.\nMore updates to follow.\n*The name of John and Physiotherapist have been used to maintain privacy.', u'entity_id': 861, u'annotation_id': 5510, u'tag_id': 1988, u'entity_type': u'post'}, {u'quote': u'The most concrete and useful info I found on your website is this:\xa0An 11.000 sqm house gives space to everyone who has an in^terest in contributing time, skills and resources into a manifestation of unconditional sharing and co-creation.', u'entity_id': 14071, u'annotation_id': 5509, u'tag_id': 1988, u'entity_type': u'comment'}, {u'quote': u'One of the important lessons I learned is: "you can\'t co-create if you don\'t resonate" and "a little shift in perspective" is often all you need to get back into flow. When I stop resisting, things happen. "', u'entity_id': 846, u'annotation_id': 5508, u'tag_id': 1988, u'entity_type': u'post'}, {u'quote': u'@Noemi absolutely will share the developments about how the various communities contributed. With the intent on making it available to everyone on the global scale, we will answer production costs, and acquisition\xa0related questions at a later date.', u'entity_id': 26022, u'annotation_id': 5507, u'tag_id': 1988, u'entity_type': u'comment'}, {u'quote': u'Will be looking forward to updates @Maria. I would especially be interested to read about the process of getting communities involved and what their contribution was.\nIs there a business model behind, how will production costs be covered so that more people can acquire Soundsight \xa0(or buy?)?', u'entity_id': 24829, u'annotation_id': 5506, u'tag_id': 1988, u'entity_type': u'comment'}, {u'quote': u"Thank you for the comments regarding SoundSight. @andra Pop The project is moving along at its pace, as much time is dedicated to working with the blind community, as they are part of the co-creation team. There is indeed an initial prototype that has been tested.\nYes, there is a lot of work and research being done to find ways to improve life for partially-sighted and blind people. This software transforms lives for the better and will be available for everyone. \xa0It\u2019s a great step in improving the human race's understanding of its own vast and incomprehensible capabilities. There will a follow-up and we will share on the developments.", u'entity_id': 23605, u'annotation_id': 5505, u'tag_id': 1988, u'entity_type': u'comment'}, {u'quote': u'The other item I fould almost universally helpful and reconiling is a list of cognitive biases. For me it very much drives home the point that the mind really is a very messy thing that is quite dismal at some tasks and quite impressive at others. And we are probably very lucky there is a good deal of variation between people.', u'entity_id': 32272, u'annotation_id': 5515, u'tag_id': 324, u'entity_type': u'comment'}, {u'quote': u"Thank you for sharing this very interesting experience.\n\nThe language is for sure the most powerful \u201cvehicle\u201d for integration and new ways of teaching might make it happen faster and deeper. Language also can instigate to newcomers a different view of themselves by providing new words, different expressions and more detached emotions.\n\nI wonder if you ever involved second generation Italians in your projects. I was just reading this article that made me think of many connections with your activities.\n\nI'm pretty sure also @Franca and @Medhin_Paolos may be interested.", u'entity_id': 9935, u'annotation_id': 12005, u'tag_id': 325, u'entity_type': u'comment'}, {u'quote': u'Hello @evelina , welcome from me too. Spoken word for cultural integration\xa0sounds like a new approach\xa0to me, at least in continental Europe. Maybe there is soimething in English-speaking countries, where spoken word as an art form is more widespread.I recall @Alex_Levene is into poetry and spoken word, and so is @Dougald . Maybe they know?\n\nHave you tried it yet? Even on a small scale? If so, how did it go? And: was there a language barrier to negotiate?\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 33795, u'annotation_id': 12004, u'tag_id': 325, u'entity_type': u'comment'}, {u'quote': u'Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?\xa0 Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).\xa0\nOur schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it\u2019s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical.\nThe language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don\u2019t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.\xa0\nMontessori\u2019s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group.\nDuring these years we\u2019ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:\xa0\n\nThe discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize \u201cThe ground language\u201d (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.\xa0\nThe comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named \u201cRoots and Branches\u201d (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.\xa0\nDue to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group.\nThe importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.\xa0\n\nFrom 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.\xa0\nOur goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.\nThe \u201cCascina\u201d will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.', u'entity_id': 828, u'annotation_id': 5520, u'tag_id': 325, u'entity_type': u'post'}, {u'quote': u'live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a "Common House" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It\'s quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That\'s partly due to economic factors.\nIt is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I\'d like to focus just on one of the challenges that I see here: how we engage with our own and each other\'s well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally.\nSharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.\nWe do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?\nThis brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on?\nThese are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other\'s resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.', u'entity_id': 830, u'annotation_id': 5519, u'tag_id': 325, u'entity_type': u'post'}, {u'quote': u"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums.\nWhithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.", u'entity_id': 33752, u'annotation_id': 5518, u'tag_id': 325, u'entity_type': u'post'}, {u'quote': u"Researchers in this area have figured out why humans have evolved rites of passage, which can be very costly (in some tribes, young men especially have to go through gruesome trials to become full members of the tribe). So where's the benefit? The benefit is that these rituals cement the tribe's cohesion, making it more fit to withstand intergroup competition, a major driver of human evolution (and suspected to have been a driver of non-human primates before we came around). How can rituals cement cohesion across participants? They harness certain biases in human cognition. For example, it has been found that doing things in sync enhances the propensity to cooperate. Consider the following\xa0experiment.", u'entity_id': 19934, u'annotation_id': 5517, u'tag_id': 325, u'entity_type': u'comment'}, {u'quote': u"I saw your post after recent activity on this thread @Alberto... I was wondering if\xa0you have read anything about rites of passage in more detail? What is the aspect that creates stronger cohesion?\xa0Is it the selection process and 'insider vs outsider' dynamic,\xa0is it the sharing of pain and hardship that creates stronger connections between individuals, maybe another reason?\nI'll recommend this book as well for everyone who is interested in the topic.", u'entity_id': 21816, u'annotation_id': 5516, u'tag_id': 325, u'entity_type': u'comment'}, {u'quote': u"a late welcome from my side. It's amazing to read about what you guys are doing. wanted to know more from you specially about applying the sociocracy model, what challenges did your group face, how do you think this can work within larger groups.I am interested in knowing more about your governance model in practice, I am trying to apply sociocracy with my group in Egypt, mainly as a governance model we are not living together ( till now ) \n\nnot sure if you are connected to this experiment days cohousing network, there are different cooperatives and intentional communities in Germany, would be nice to exchange knowledge in Case you are not connected.  ( will be happy to connect you together ) \n\nalso pinging @amiridina @Heba @Yosser @m_tantawy , check this out as an existing model and let's see how we can learn in the openvillage in the southern Mediterranean region.     \n\nhope to see", u'entity_id': 38255, u'annotation_id': 11718, u'tag_id': 323, u'entity_type': u'comment'}, {u'quote': u'It also reflects in the group\u2019s structure. Formally, it is a cooperative (in German the legal term is genossenschaft) where members buy-in an amount of 5K to co-own the property. There are 18-20 of them, with many active supporters - Open State itself has contributed large share of the camp funding to equip the space for future uses. About 10 people also live in the space, putting their time and skills into servicing it, but needing to make ends meet in the real world still.', u'entity_id': 36387, u'annotation_id': 11703, u'tag_id': 323, u'entity_type': u'post'}, {u'quote': u"Doing cohousing and interested in technical ideas; experienced in governance and also how to deal with community care and self care within communities. Lives in a setup with 41 households, an ecological house. Member of a tech cooperative doing learning technology; technical standardization; experience in consensus governance. Cohousing is less intense than a commune: interested in governance and wellbeing side of that, various aspects of therapy.\nAt #OpenVillage: for a session what I would need is an\xa0conversation with other people, to talk it through. Winnie: The Reef is already being prototyped in Brussels, talk to @Nadia &co. There's maybe already some questions that have turned up that you could shed some light on, Simon?", u'entity_id': 6360, u'annotation_id': 5514, u'tag_id': 323, u'entity_type': u'post'}, {u'quote': u"seeking ways to\xa0care for\xa0each other's well being. I'm really curious to know more about your expereince with\xa0restorative circles and if the\xa0members who were trained have begun leading them. This is a model we've been looking at for our group. Our collective mental health, especially\xa0in the last\xa0year, has become a major challenge and focus for us. We are not in a co housing situation now, but we try to share as much of our life and resources we can while living in a neighborhood together in NYC. Would love to hear any of your experiences or\xa0strategies\xa0for\xa0dealing with conflict, care for each others emotional,\xa0mental and spiritual well being.", u'entity_id': 24158, u'annotation_id': 5513, u'tag_id': 323, u'entity_type': u'comment'}, {u'quote': u'Hello @M\xf8rbeck, good to meet you.\xa0\nI am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus.\nThe traditional way to do this was this: you would leave your parents\' house, marry,\xa0settle down with your spouse and have children. This produced a "one size fits all" world, with\xa0most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are)\xa0allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized.\xa0Is this broadly correct?\nBecause if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!\xa0\nhttps://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups', u'entity_id': 6682, u'annotation_id': 5512, u'tag_id': 323, u'entity_type': u'comment'}, {u'quote': u'Interesting way of phrasing it, "social hiatus". I am wondering if you have your own memory of feeling strange or unease, or lonely in a situation. How long have you been living in the neighborhood?\nFor me and my colleagues in Edgeryders, being new to a city like Brussels (we live here\xa0but we are all expatriates)\xa0definitely risked feeling loney or unfit. It made us reconsider our lifestyle habits and become more social in our own living environment, through trying\xa0co-housing. The reason it works is that we are both designers and subjects of the experiment, so we only designed what we are willing to do. Have a look at the story we posted\xa0and feel free to comment there or here..\xa0do you socialize or create bonds with people in Bovisa outside your student circle or friends? if yes, great. if no, what are the constraints at the personal level?', u'entity_id': 7784, u'annotation_id': 5511, u'tag_id': 323, u'entity_type': u'comment'}, {u'quote': u'Collaboration', u'entity_id': 6272, u'annotation_id': 12504, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u"I'd love to discuss those things with someone who has a little more care background than I do (materials science).", u'entity_id': 9902, u'annotation_id': 5540, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u"There is a hard work on coordinating activities, plans, schedules, people, and it can be done only in a shared and collaborative way. Infact, the issue i'm currently working on is about leadership.", u'entity_id': 852, u'annotation_id': 5539, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u"Collaborations that have formed, and outcomes that have occured would be presented as digrams using the various logos of groups, on a timeline. Branding can be an effective language, shows diversity of collaborating groups through symbols/colour, and is also easy for the business sector and authoritive bodies to understand. It's also how I organise stuff in my head every few months, so I guess that could be a good next step for me.", u'entity_id': 24984, u'annotation_id': 5538, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'es Just one small thing: OpenCare is indeed a Horizon 2020 project (official landing page with all the logos, bells and whistles: http://opencare.cc). How could we, concretely, collaborate? Maybe you want to connect with @WinniePoncelet , spearheading a project to make an open source process to produce human\xa0insulin. Among other things, Winnie is putting together a session on citizen science in care at an event OpenCare is organising, called OpenVillage. Does this sound interesting to your junior school crowd?', u'entity_id': 19274, u'annotation_id': 5537, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u"They also did things like ran communal bakeries instead of having individual ovens. I would say these are examples of cultures of collaboration born out of material necessity. This has been consistent with my own experience around how collaboration happens. It doesn't happen without a compelling reason... The enspiral crowd is running an interesting experiment. It seems to work within one context where people have aligned interests and a compelling driver of\xa0collaboration (economic activity), possibly other things too?", u'entity_id': 33793, u'annotation_id': 5536, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'Je pense ne pas \xeatre le seul, en disant qu\u2019une fois tous les x-temps dans le milieu socioculturel, \xe9v\xe9nementiel ou de l\u2019entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon \xe9nergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n\u2019arr\xeate pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c\u2019est moi ? Une logique peu constructive mais tellement facile qu\u2019elle nous \xe9loigne du vrai probl\xe8me : pourquoi n\u2019apprenons nous pas la culture de la collaboration \xe0 partir du plus jeune \xe2ge ?\nNous l\u2019entendons partout : nous sommes dans une p\xe9riode transitionnelle, qu\u2019elle soit positive (\xe9mergence d\u2019\xe9conomie collaborative, renouveau des mod\xe8les low-tech, cr\xe9ation d\u2019outils num\xe9riques de gestion d\xe9centralis\xe9e, \u2026) ou n\xe9gative (\xe9mergence d\u2019organisations extr\xe9mistes, renouveau des partis populiste-fasciste, cr\xe9ation de tactiques num\xe9rique de propagande,\u2026) nous voyons que l\u2019importance de se retrouver sous un arbre de valeur est d\u2019une grande importance en ce moment. Les outils sont l\xe9gions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration d\xe9centralis\xe9s : Github. Tous ont une arm\xe9e de fans, mais tous ont le m\xeame probl\xe8me : si il n\u2019y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau d\xe9cor. C\u2019est comme donner des outils de permaculture \xe0 un fermier industriel : si il ne voit pas que les valeurs partag\xe9es sont un atout majeur, il restera avec ces m\xe9thodes classiques.\nLa Culture de la collaboration\nComme n\u2019importe quelle autre id\xe9e soci\xe9tale, elle devient omnipr\xe9sente quand elle est vue comme une partie de notre \u2018culture\u2019. Mais aucune id\xe9e n\u2019a fait partie de la soci\xe9t\xe9 sans avoir \xe9t\xe9 confectionn\xe9e d\u2019une mani\xe8re ou d\u2019autre. Un premier pas pour aller vers cette \u2018Culture de la collaboration\u2019 est de voir l\u2019information comme un bateau qui doit arriver \xe0 bon port. Ca ne sert \xe0 rien de tenir l\u2019information pour soi, partage la avec la bonne personne, passe les bonnes id\xe9es comme si c\u2019\xe9tait un plateau de charcuterie \xe0 une soir\xe9e raclette. Chaque personne prendra bien soin de choisir l\u2019info qui lui convient le plus.\nCar une information qui v\xe9hicule librement aide \xe0 am\xe9liorer le deuxi\xe8me point : Ne perdez plus d\u2019\xe9nergie \xe0 r\xe9inventer la roue mais essayer de contribuer avec des projets d\xe9j\xe0 existant. C\u2019est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d\u2019autres informations qu\u2019on apprend beaucoup. Rester dans son enclos n\u2019aide personne, m\xeame si le r\xe9flexe protectionniste se comprend : vous voulez contr\xf4ler votre id\xe9e contre un opportunisme qui pourrait se cacher derri\xe8re chaque recoin. Mais si nous acceptions, comme c\u2019est d\xe9j\xe0 le cas dans les recherches universitaires, d\u2019avoir un syst\xe8me de mentions g\xe9n\xe9rales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme.\nRecr\xe9er la membrane de confiance\nCar voil\xe0, le grand probl\xe8me qui se cache derri\xe8re cette peur inn\xe9cessaire de la protection d\u2019information: on \xe0 perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se m\xe9fier de l\u2019autre. Car comme disait ce bon vieux Sartre: L\u2019enfer c\u2019est les autres. Mais si nous relisons la th\xe9orie du Darwinisme social nous voyons que c\u2019est notre aptitude \xe0 collaborer qui \xe0 fait que nous avons surv\xe9cu aux animaux dix fois plus grand que nous, aux p\xe9riodes glaciaire et aux famines.\nPour recr\xe9er cette membrane de confiance nous ne devons pas croire dans \u2018les grand mouvements\u2019, car comme les grandes histoires, elles sont mortes avant d\u2019entrer dans la p\xe9riode post Moderne. Soyons comme Enspiral, un r\xe9seaux de petit groupes. Cr\xe9ons des petits faits, pour r\xe9apprendre \xe0 se faire confiance. On ne doit pas d\xe9crocher la lune, mais simplement savoir aider son voisin. La petite pierre que j\u2019apporte \xe0 cet \xe9difice est de prendre le caf\xe9 chaque matin avec quelqu\u2019un d\u2019autre, d\u2019\xe9couter son histoire et de voir ou je peut faire du lien.\nL\u2019ego doit donner place \xe0 l\u2019id\xe9e\nDans notre soci\xe9t\xe9 contemporaine nous donnons encore et toujours trop de place \xe0 l\u2019ego, qui l\u2019emporte souvent en discussion de l\u2019id\xe9e. Mais voil\xe0 si nous voulons vraiment cr\xe9er une culture de la collaboration nous devons mettre en place des freins \xe0 l\u2019ego. De pouvoir \xeatre fier de l\u2019ajout qu\u2019on a donn\xe9 \xe0 une id\xe9e. Ne plus voir la collaboration comme une simple \xe9conomie du (mauvais) couple, ou chacun donne et qu\u2019on fait les comptes quand \xe7a ne va pas, mais se focaliser sur l\u2019id\xe9e et les valeurs v\xe9hicul\xe9es en commun.\nPour \xe7a la collaboration doit se faire par les faits et non par les mots. Trop souvent la r\xe9union pr\xe9c\xe8de la participation, mais c\u2019est en faisant qu\u2019on apprend plus de la personne, que chaque personne est mise \xe0 nue. Une expression invent\xe9e par Nicolas de OpenFab trouve ici parfait \xe9cho: nous devons cr\xe9er l\u2019atome de FAIRE.\nUn prochain pas pourrait \xeatre de redonner dans notre \xe9ducation collective une vraie place \xe0 la collaboration. Pas de travail- en groupe forc\xe9 qui mal organis\xe9 nous prouve que l\u2019enfer c\u2019est vraiment les autres, mais une culture de la collaboration ancr\xe9 dans le syst\xe8me d\u2019\xe9ducation g\xe9n\xe9ral.\nSi vous avez des ressources la-dessus je suis preneur.\nHoward Rheingold | Who Said Collaboration Wasn\u2019t Sustainable\nJason Louv |The Next Buddha Will Be a Collective\nDaniel Christian Wahl | Collaboration and empathy as evolutionary success stories\nEnspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals', u'entity_id': 33747, u'annotation_id': 5535, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u'Well collaboration, is a term within it which includes a large field of understanding the term itself. @Yannick we were used to hear the word "Crowd of sheeps" which was a very powerfull intrigue to make people become more selfish and viewing from the wrong corner has made them to feel and get separated, so that the word collaboration was mistaken with a conspiracy word "Crowd of sheeps". It has nothing similar in this two words and i wuld like to concetrate more on the collaborative ways and methods.\n\nThe collaboration itself, should begin as an inner movement and will, to enlight you within you and make you spread your aura with other people around you, startin from your home where you live, your school or college, your working place, your company or your weekends house neighbours.\xa0\nYou should concentrate on the connections to every each person neat you, and try to connect them with your inner will and try to transmit the message also with your aura. Start learning new things, start leraning new cultures and characters.\xa0\nMaking compliments and new friendships is the best way, to explore each others mind and ideas, collecting mutual interests and creating fellowships and spreading the collaboration breath.\n\nI am more spiritually bounded to this idea, because I am also a very social person and the topic was bolded for me as i readed it, and I hope you will endure the way.\xa0\n\nWish you all the best...', u'entity_id': 33761, u'annotation_id': 5534, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'My take on this is: you create trust by collaborating, not the other way around. Collaboration comes first.\nThe trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.', u'entity_id': 9116, u'annotation_id': 5533, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'When the discussion was coming to an end we all felt we had got a lot of information and the workshop was going to close. So Nadia came up with a good idea to end the workshop with something concrete. We all felt that one of the biggest issues in care is that we live to much on our own island and that if we want to make care better we need to share and collaborate. But to collaborate we need to create trust. So this exercise was given to every participant and will hopefully end up in solidifying the care network in Belgium. The following question was asked:', u'entity_id': 788, u'annotation_id': 5532, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u'2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be\xa0a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation \xa0on some specific subject with high interest and\xa0later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you want.', u'entity_id': 21489, u'annotation_id': 5531, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u"My main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what?\xa0I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it's just me", u'entity_id': 8193, u'annotation_id': 5530, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'We have also been developing and presenting the general information and interactive sessions for the BIDs in Brussels. We invited architects, developers, retailers, freelancers and members of the communities and explained the concept, but also ask them for feedback. There has\xa0been positive feedback and some are really keen on implementing, but they need guidance - and we want to prepare and adapt the framework which has been shared by other BID countries, which would be useful and simplify the launching of BIDs across Belgium. The model works this way: by defining the geographical zone, having a collaborative approach to working together as a community, whilst addressing the issue that is of priority and defining the projects for that area. BIDs can be supported by a levy that business owners, citizens, and the municipality contributes to. Crowd-funding has also been used to support local projects. Some cities have it already in Belgium, albeit these are a slightly different models - Mechelen and Ghent for example. The BID is a non-profit organization, with a task force representation with an open source, collaborative and transparent approach and it needs to be inclusive of the Open Care element.', u'entity_id': 716, u'annotation_id': 5529, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u'After the first round of discussions we noticed that all kind of organizations are ready to become more collaborative, but they are missing the step-by-step tools to achieve this.\xa0They all are conscious about the power of collaboration, but have never had successful long lasting experiences. The goal of this workshop was to find the key elements to make a collaborative initiative succeed, this leads us to the second point.', u'entity_id': 541, u'annotation_id': 5528, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u'This two part evaluation exercise is a follow up on the most discussed topic in our Brussels Workshop. We talked most of the day about collaboration and how we want to find better ways to create fruitful coaction. If we want to be abble to work together inside our value system, we need to understand how we work. If fruitful collaboration means working togheter while feeling good towards each other in a mutual environment of respect, these two thought bubbles could be for you.', u'entity_id': 785, u'annotation_id': 5527, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u'While seems easier to involve patients, patrons and makers in open discussion about innovation and shared practices, the world of education and professionals themselves should undergo a rethinking towards wide collaboration and practicing in communities in the fast changing, seamless and heterogenous world we all live in.', u'entity_id': 14715, u'annotation_id': 5526, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 5525, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u'Through collaboration, listening to local caring initatives/groups and providing what we can. I see community and care as part of culture alongside the arts. Examples;', u'entity_id': 14308, u'annotation_id': 5524, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u"@dfko and me ended up Skyping on Monday. It was kind of last minute after long silences and trying to find overlap in each of our hectic agendas. Sorry @trythis and @Alberto ! I'll try to give a short summary. We discussed that as I'm more active on ER, I can serve as a link here.\nThe project is still going well in technical terms. Only now, due to time and communication constraints, international collaboration seems possible. A\xa0local group in Sydney just launched a few weeks ago and already made good progress. Other groups are open to launch a local chapter.\nWe'll be launching a chapter\xa0in Belgium to see if our community is up for joining this. Like that\xa0we will test the international collaboration and see where it leads us, perhaps others will join as well.\nThere's a diversity of angles, eg. we could contribute more in terms of communication, while the others are more technically adept. It's\xa0interesting to me that each group can have their own approach, and all contributing to the same goal.\nI'm reaching out to the other labs in Belgium to see if they are up for joining. There's already a good diversity there (arts, technical, educational, ...).\nDoes anyone have any ideas in terms of collaboration process? We're in a new field to set this up at such a scale.", u'entity_id': 23778, u'annotation_id': 5523, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'I\u2019m glad the idea (and the movement) of Food Sovereignty is spreading! And I will grant you that becoming self sustainable and autonomous is no easy feet. On the other hand, everything is as simple or as hard as we make it out to be. In nature everything is connected and everything functions through viable, long-term, symbiotic relationships. In this new model of a new society based on solidarity, collaboration, and fairness we are trying to create and advocate, I really do not think that anything can be achieved without partnerships. Nothing in nature works alone, why should we? Hence concepts like CSA are strong representatives of this new type of communities we need to evolve into. It also stands to reason that no-one can know everything and have experience (let alone expertise) in every field; by combining forces with someone that knows how to farm we stand to gain lots more than if go at it on our own. So I would say find local farmers to source your food from and co-produce together.', u'entity_id': 11122, u'annotation_id': 5522, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 39337, u'annotation_id': 11653, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u'Paola:  my theory is that collaboration is super expensive. Is should be paid because it is a lot of investment. We can convince foundations or orgs to pay people to collaborate.', u'entity_id': 38786, u'annotation_id': 11891, u'tag_id': 2621, u'entity_type': u'post'}, {u'quote': u'Whenever organisations start to build additional shelters, or do maintenance/repairs the locals get heavily involved.', u'entity_id': 39334, u'annotation_id': 11647, u'tag_id': 2621, u'entity_type': u'comment'}, {u'quote': u"They also did things like ran communal bakeries instead of having individual ovens. I would say these are examples of cultures of collaboration born out of material necessity. This has been consistent with my own experience around how collaboration happens. It doesn't happen without a compelling reason... The enspiral crowd is running an interesting experiment. It seems to work within one context where people have aligned interests and a compelling driver of\xa0collaboration (economic activity), possibly other things too?", u'entity_id': 33793, u'annotation_id': 5541, u'tag_id': 327, u'entity_type': u'comment'}, {u'quote': u'For the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a\xa0form to win even when you lose.', u'entity_id': 507, u'annotation_id': 5542, u'tag_id': 328, u'entity_type': u'post'}, {u'quote': u'Open Policy making group in Milano as they work on\xa0Collectively enforcing a mobility policy. How do you make people comply with this? Its cheaper for shop owners to pay the fine. Working with social designers, ethnographers. Collective law enforcement. Is it about understanding constraints at a system level? A live debate\u2026? Let Noemi know what is needed to go deeper on this theme.', u'entity_id': 6415, u'annotation_id': 5544, u'tag_id': 329, u'entity_type': u'post'}, {u'quote': u'Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable.\nThe story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017.\n\nIn November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject.\nLisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies.\nIt was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders.\nCristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity.\nThis is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight.\nListening\xa0it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors. \xa0\xa0\nIncluding as the collaboration with the trade association got closed we\u2019ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers.\nGoing where innovation beats\xa0we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into\xa0co-design sessions pivoting around their necessities may generate unexpected outcomes.\nDealing with collective intelligence\xa0is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it.\nThis is where we stand now and the next steps are:\nCo-designing / mobilizing resources\xa0of course we will not predefine outputs, but rather keep the sessions open to any outcomes.\nPrototyping policies\xa0by monitoring and evaluating this experimentation.\nWe are aware that talking about \u201cenforcing\u201d a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process.\xa0Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions.\nIt would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.', u'entity_id': 819, u'annotation_id': 5543, u'tag_id': 329, u'entity_type': u'post'}, {u'quote': u'To build a base of knowledge to be collectively autonomous. Yes we live 20mins away from the hospital, but do they come in 20mins? No.', u'entity_id': 38787, u'annotation_id': 11886, u'tag_id': 1942, u'entity_type': u'post'}, {u'quote': u'Thanks @markomanka - this link is interesting. I love what it says about Ubuntu philosophy; "I am because we are, and since we are, therefore I am." Growing the sense of \'we\' is so fundamental to every other generative and evolutionary human project - at least to my understanding so far. I think of it as our \'collective muscle\' - our ability to think on behalf of the whole. And this muscle\xa0has become so\xa0emaciated by the experiences of modernity. Its not simply about \'being together\' or connecting - virtually or physically. It has a markedly different quality. The Misak indigenous peoples of Columbia seem to take this to a whole other level. When we co-hosted a workshop with one of their elders\xa0late last year, I was really drawn in by their descriptions of the collective consciousness and how this only came about and was sustained by active engagement in Minga (collective work). You\'ll get a sense of the clarity of their thinking here:\xa0http://www.lifemosaic.net/eng/tol/life-plan/ though\xa0I don\'t think they mention Minga in this video.', u'entity_id': 27228, u'annotation_id': 5546, u'tag_id': 331, u'entity_type': u'comment'}, {u'quote': u'We have not really produced data ourselves yet. Looking forward to when we do and at that point, the team should make the call together. Then it is a conscious and collective decision.', u'entity_id': 18064, u'annotation_id': 5552, u'tag_id': 333, u'entity_type': u'comment'}, {u'quote': u"For the past two years, we've been using sociocracy in our community organisation.\xa0Its\xa0brought flow and connection to all the different activites that take place in pursuit of our purpose and to sustain us as an organisation which can otherwise quickly feel like the left hand doesn't know what the right hand's doing.\xa0Its brought clarity to our decision making, and how our work is organised. I particularly value the use of consent rather than consensus which uses the criteria; 'is it good enough for now, safe enough to try' as the basic test in approving decisions.\xa0Perhaps you've come across it?", u'entity_id': 23537, u'annotation_id': 5551, u'tag_id': 333, u'entity_type': u'comment'}, {u'quote': u'over decades we lost our acces to knowlege, public decision making (if there was ever such a thing?) and there is much need to create a base for organizational intelligence and social decision making. There are some tools available like wikipedia and e-govenance, gut to difficult to manage for the broad society and often higly manipulated by "editors". To find a way for decisionmaking, maintaining bottom up decision making by meta-rules that can be adjusted in an iterative democratic manner and making wisdom available not driven by profit intersts.\nI wish you good luck, because your issues have a high priority for societal development and as well for a socio-economic development.', u'entity_id': 20815, u'annotation_id': 5550, u'tag_id': 333, u'entity_type': u'comment'}, {u'quote': u'Indeed distributed decision making processes\xa0(cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them),\xa0the autonomy of each team and individual in his/her area of competence and responsibility\xa0(where each person\xa0is sometimes leader\xa0and sometimes follower)\xa0combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones\xa0to move forward in the right direction.', u'entity_id': 24331, u'annotation_id': 5549, u'tag_id': 333, u'entity_type': u'comment'}, {u'quote': u'What is needed, on a personal level, for collective intelligence to work? How can we deal with immanent power structures? In my opinion the goal is not to take them away.\n\n\n\nChris:', u'entity_id': 38811, u'annotation_id': 11749, u'tag_id': 334, u'entity_type': u'post'}, {u'quote': u"The big advantage is that all global groups\xa0are interconnected for the information aspect. The international element\xa0will probably happen relatively smoothly if the right digital infrastructure and practises are in place, as there is a clear incentive to do so: faster learning, collective intelligence. Coordination costs should be low, there's only information being shared and this is cheap and fast if you have people who keep track of data.", u'entity_id': 25366, u'annotation_id': 5563, u'tag_id': 334, u'entity_type': u'comment'}, {u'quote': u'Dealing with collective intelligence\xa0is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it.', u'entity_id': 819, u'annotation_id': 5562, u'tag_id': 334, u'entity_type': u'post'}, {u'quote': u'Hi Noemi,\nThanks for your reply, its much appreciated!\nYou are definitely right about the controversiality of advice. Main cause of this is, in our opinion, the so-called island approach, where there is little space for a holistic view on the patient! Specialists tend to stay within the boundries of their area of expertise (even if the advice turns out not to be the best for the particular patient).\nWe realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!\xa0\nYour already helping by sharing your thoughts, opinion and experience. We are happy to learn more from experts and get in touch with people that can provide relevant advice!\xa0\nCarry and Denise', u'entity_id': 17838, u'annotation_id': 5561, u'tag_id': 334, u'entity_type': u'comment'}, {u'quote': u'collective material and organizational capacities i', u'entity_id': 521, u'annotation_id': 5559, u'tag_id': 334, u'entity_type': u'post'}, {u'quote': u'2. We also have a way to produce cheap, accurate ethnographic data around problems like the ones mentioned above, with a focus on surfacing creative and actionable solutions. This would enable you to engage a large number of participants (thousands) in a participatory process for designing solutions to meet their own needs. This methodology is being employed/supported by a growing number of actors including the current Swedish minister of Nordic cooperation and strategic foresight, the European Commission, the Rockefeller Foundation, the United Nations Development Program and United Nations Volunteers as well as the cities of Milan and Matera in Italy, and of Bucharest in Romania. We have developed a methodological guide for doing this - email me if you would like a copy (cannot post online): nadia@edgeryders.eu.', u'entity_id': 5234, u'annotation_id': 5558, u'tag_id': 334, u'entity_type': u'post'}, {u'quote': u'We think that this ceaseless exchange is collective intelligence at work.\xa0Network analysis is a useful tool to understand this process, and perhaps find ways to improve upon it. Thinking in networks\xa0is a great way to generate fresh, relevant questions.\xa0How do you know your network is going in the right direction? What is a \u201cdirection\u201d in this context? Is everyone following the same path? Do people group into sub-communities? What are the focus of these (sub) communities?', u'entity_id': 5260, u'annotation_id': 5554, u'tag_id': 334, u'entity_type': u'post'}, {u'quote': u'The fascinating part is this: by looking at the network, we can extract information that no individual in the network has. The whole is greater than the sum of the parts. Collective intelligence', u'entity_id': 5260, u'annotation_id': 5553, u'tag_id': 334, u'entity_type': u'post'}, {u'quote': u'Excellent piece @marcoclausen\xa0. It resonates with other stories and opinion I have heard, especially in the context on the unMonastery: many so-called social innovation initiatives (including, er, Edgeryders itself) are constantly at risk of burning out the (relatively)\xa0few people who pull\xa0most of the weight.\xa0\nNoemi above seems to endorse governance as a way to mitigate friction. My point of view is that governance often is an attention sink, and could potentially make burnout worse. This is why we are so interested in do-ocracy as a way of life: it has low overhead.\xa0\nOn the other hand, I could not agree more on collective learning. Our own version of that is an emphasis on documentation, so that people have a shared, written, searchable and evolving\xa0knowledge base. I think this is working quite well for us.', u'entity_id': 16817, u'annotation_id': 5565, u'tag_id': 335, u'entity_type': u'comment'}, {u'quote': u'In taking over responsibilities in issues that affect the whole society - refugees, climate change, social and ecological justice, to name just a few - community-based and grassroots initiatives play an increasing role in tackling these challenges and their effects on the local level. They are breeding grounds for social innovations and new bottom-up-strategies. Often people take initiative when traditional or institutional forms of care and support decline or do not meet people\u2019s needs. Community gardens and urban agriculture- the field in which I am personally engaged- can serve as a good example. Without being part of planning, or political programs, these places are mostly created by local, self-organized initiatives. Based on local engagement and alternative forms of economy and often without public or financial support, community gardens contribute to the well-being, social inclusion, healthy and sustainable lifestyles, biodiversity, the physical- as well as the social climate. Not only they contribute to the physical health of their participants, but also to their sense of dignity and self-esteem.\nThere is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.\nOver time, this situation can result in what you might call an \u201eactivism-burnout\u201c. When this happens, physical, mental, and social damages are far too often just seen as a personal or biographical drama. These individual burn-outs are likely to be accompanied by a weakening or even a collapse of the organizations and initiatives that are often carried by the engagement of single individuals. The disintegration can lead to a situation where an organization loses knowledge, expertise, networks, and spirit.\nFor the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a\xa0form to win even when you lose.\nCommunity groups often focus on single questions, spaces, conflicts. They often react under economic and time pressure to immediate problems. They act within marginalized or weak political and economical communities. They deal with institutions and stakeholders with more time, much power, and resources whereas they rely on limited personal resources or precarious funding. Simultaneously there are a lot of joy, learning and personal empowerment involved as well as a sense of a meaningful life and community relations. However, the risk of failing is high, which can lead to frustration and disintegration.\nCommunity care structures can help to ease this stress not only in giving support but also in a form of what we call \u201ecollective learning\u201c. They can work as an archive for the knowledge, the experiences and know-how being created in grassroots and community initiatives. Thus, they allow activists to see themselves not only as part of a\xa0singular local fight that you might win or lose\xa0but as contributors to a collective living memory.', u'entity_id': 507, u'annotation_id': 5564, u'tag_id': 335, u'entity_type': u'post'}, {u'quote': u"When we were in Matera with unMon, a local pharmacist held a lecture about the old\xa0system of community provided healthcare. And why it disappeared with modernity. According to him it\xa0was basically held together by the need to manage an important resource- water.\nIn Matera there is a huge man-made underground reservoir of water, and a system for accessing it through wells. Each well is situated in a courtyard shared by a number of individual family houses. They collectively manage their shared well and according to him this was the key reason as to why there was\xa0such a strong sense of neighbourhood and mutual care amongst residents. Because of the day to day interaction and mutual dependence on one another to responsibly manage the shared resource. When the state moved people into modern dwelling (in the 80's?) then they had running water etc. No need for daily interaction and no dependency - the system broke.", u'entity_id': 33793, u'annotation_id': 5570, u'tag_id': 336, u'entity_type': u'comment'}, {u'quote': u"Ours is a rental situation, for now. I'm thinking even when you acquire property and co-own it in some way, there needs to be a provision for getting out. Yes, it's costly, but then most personal relationships or life problems are, when they hit a wall no?", u'entity_id': 22476, u'annotation_id': 5569, u'tag_id': 336, u'entity_type': u'comment'}, {u'quote': u'The kids have been a strong \u201cglue\u201d among the family with kids and others, who became kind of uncles, grandpas or grandmas. And a topic of discussion for the other ones.', u'entity_id': 743, u'annotation_id': 5571, u'tag_id': 337, u'entity_type': u'post'}, {u'quote': u'Collective treatment and destigmatization. No brainer.', u'entity_id': 8207, u'annotation_id': 5573, u'tag_id': 338, u'entity_type': u'comment'}, {u'quote': u"3) Collective treatment - something about the nature of receiving shared treatment with other people seems to have an effect on people. Perhaps it cuts through the common Western idea of illness as something private, secret and shameful - whatever it is, sharing one's vulnerability and the act of seeking support and help with other community members seems to have a profound psychological charge.", u'entity_id': 671, u'annotation_id': 5572, u'tag_id': 338, u'entity_type': u'post'}, {u'quote': u'Solo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!', u'entity_id': 10762, u'annotation_id': 5575, u'tag_id': 339, u'entity_type': u'comment'}, {u'quote': u'professionalization of many specialities places it in a realm outside of normal access, ie through insurance companies, inhumane public institutions, high priced private centers. \xa0An on-going struggle fer sure!', u'entity_id': 29958, u'annotation_id': 5578, u'tag_id': 340, u'entity_type': u'comment'}, {u'quote': u'Disease becomes individualized as \u201chealth\u201d and \u201cwellness\u201d becomes commodified.', u'entity_id': 521, u'annotation_id': 5577, u'tag_id': 340, u'entity_type': u'post'}, {u'quote': u"As for Medecins sans fronti\xe8res, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,\xa0 are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.", u'entity_id': 23874, u'annotation_id': 5576, u'tag_id': 340, u'entity_type': u'comment'}, {u'quote': u'comfortable for the patient.', u'entity_id': 33751, u'annotation_id': 5579, u'tag_id': 342, u'entity_type': u'post'}, {u'quote': u'\u201cwellness\u201d becomes commodified.', u'entity_id': 521, u'annotation_id': 5580, u'tag_id': 343, u'entity_type': u'post'}, {u'quote': u'-Discussion starting generally, and then what platform can become faircoop? PLATFORM AS A COMMON, community as a shareholder; hopefully it will be ready to launch!', u'entity_id': 6372, u'annotation_id': 5586, u'tag_id': 345, u'entity_type': u'post'}, {u'quote': u'How can we create non-extractive alternatives platforms that can compete with the existing one?\nIs it possible to create platforms that are "commons"?\nCan we use the wealth unlocked by this technology to fund non-profit community projects?\nHow can an organization be both efficient and competitive without losing in inclusiveness and openness?', u'entity_id': 6300, u'annotation_id': 5585, u'tag_id': 345, u'entity_type': u'post'}, {u'quote': u"I'm curious to know how the informal forums to share the 'tough stuff' are going since you posted this? Are people finding this is effective in managing work pace/load to reduce burnout?", u'entity_id': 23537, u'annotation_id': 5597, u'tag_id': 348, u'entity_type': u'comment'}, {u'quote': u'I found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability.\nIn speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability...\nAnyway, thank for posting.', u'entity_id': 19688, u'annotation_id': 5596, u'tag_id': 348, u'entity_type': u'comment'}, {u'quote': u"thanks for getting back to me. I definitively consider myself lucky and realize that I have a very strong support system. The thing that struck me was that even in my comparatively 'good'\xa0situation, it was so difficult for me to communicate my feelings.\xa0For me, this\xa0was a huge added pressure and kept\xa0me from getting help\xa0for a long time.\xa0In our project group, we are investigating how young people, particularly in creative professions/fields of study, deal with issues of mental well-being, who they share their feelings with, or\xa0why they don't.", u'entity_id': 11003, u'annotation_id': 5595, u'tag_id': 348, u'entity_type': u'comment'}, {u'quote': u"We talked about how younger people can be a connector, how it needs a connector...there are many of us who want to engage but don't because the connection is needed and doesn\u2019t happen without being designed. When travelling connecting is very easy, but in your own town you rarely have deep conversations with people you don\u2019t know. Openness as a mindset is very interesting to see how society is structured n our head. How this huge fear that comes out of nowhere. Media says you should have fear now, that the new is threatening. I love my Grandma but when it comes to this topic I think omg we should not even talk about this topic and I have no idea how to change things. I think it\u2019s a lot of empathy, we had a huge fight...it was all about him not letting what\u2019s happen...not wanting to feel it...keeping it theoretical. The next day there was a change of perspective. It\u2019s also overwhelming for many people, related to make yourself vulnerable and allowing yourself to feel. It\u2019s a very delicate and sensitive how to do this contact and get them in touch with their feelings.\u201d", u'entity_id': 494, u'annotation_id': 5594, u'tag_id': 348, u'entity_type': u'post'}, {u'quote': u'alking about the proposal,\xa0I like the idea of helping doctors communicating \xa0more efficiently with each other in order to help patients, as a consequence,\xa0in relieving the weight of their own personal pathological condition. Besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when for instance there might be a language barrier.', u'entity_id': 33771, u'annotation_id': 5607, u'tag_id': 350, u'entity_type': u'comment'}, {u'quote': u'At the moment I\u2019m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students.', u'entity_id': 524, u'annotation_id': 5604, u'tag_id': 350, u'entity_type': u'post'}, {u'quote': u'"Thanks to Sketchfab, Mike was able to send the 3D model of his wife\u2019s skull to surgeons at both hospitals. Johns Hopkins claimed that their only recourse would be a full scalping to drill through the portion of his wife\u2019s forehead above her eyebrow. UPMC, though, agreed to do it."', u'entity_id': 4112, u'annotation_id': 5608, u'tag_id': 351, u'entity_type': u'post'}, {u'quote': u'After the first submission, our original project "doc.doc" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually\xa0turned out the early project in ResQ!\n\nIn particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as\xa0emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.\n\n\xa0Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it!\n\n\n\n\n\tOur project in a tweet\n\n\n\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.\n\n\n\n\n\tProblem that our project\xa0is willing to solve\n\n\n\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.\n\nThe current way of working shows the following problems:\n\n\n\n\n\tThe language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.\n\n\n\tThe missing digitalization of the gathered health data and the consequent discontinuity of the healing process.\n\n\n\tThe limited precision of the anamnestic research due to the high number of patients and the short time available.\n\n\n\n\n\tFinal User, individuals and\xa0community target\n\n\n\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.\n\n\xa0https://www.youtube.com/embed/MZSMi316E-Y\n\n\n\n\n\tSolution, brief description of the project\n\n\n\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.\n\n\nResQ-board.jpg2045x2500 640 KB\n\n\n\n\n\n\tTechnologies we will adopt\n\n\n\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.', u'entity_id': 866, u'annotation_id': 12008, u'tag_id': 1992, u'entity_type': u'post'}, {u'quote': u'ResQ is conceived to ease the communication among physicians (involved in critical context such as temporary hospitals and reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.', u'entity_id': 33817, u'annotation_id': 5612, u'tag_id': 1992, u'entity_type': u'comment'}, {u'quote': u"Licenza, che pensi di utilizzare\n \n\nOpensource\n\n\nStato attuale del progetto*\n \n\nIl progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io.\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\n\n\nConsiderando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto.\n \n\n1.0 Scoperta\n1.1 Osservazione del contesto\nDoc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d\u2019occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti.\n\n1.2 Acquisizione di idee, spunti, intuizioni\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n2.0 Definizione\n2.1 Analisi delle soluzioni\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n3.0 Sviluppo\n3.1 Progettazione e prova del prototipo\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n4.0 Rilascio\n4.1 Completamento del prodotto/servizio\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.\n\xa0", u'entity_id': 33729, u'annotation_id': 5611, u'tag_id': 1992, u'entity_type': u'post'}, {u'quote': u"1.2 Acquisizione di idee, spunti, intuizioni\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n2.0 Definizione\n2.1 Analisi delle soluzioni\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n3.0 Sviluppo\n3.1 Progettazione e prova del prototipo\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n4.0 Rilascio\n4.1 Completamento del prodotto/servizio\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.", u'entity_id': 33729, u'annotation_id': 5610, u'tag_id': 1992, u'entity_type': u'post'}, {u'quote': u'Talking about the proposal,\xa0I like the idea of helping doctors communicating \xa0more efficiently with each other in order to help patients, as a consequence,\xa0in relieving the weight of their own personal pathological condition. Besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when for instance there might be a language barrier.', u'entity_id': 33771, u'annotation_id': 5609, u'tag_id': 1992, u'entity_type': u'comment'}, {u'quote': u'I should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.', u'entity_id': 35903, u'annotation_id': 11600, u'tag_id': 354, u'entity_type': u'post'}, {u'quote': u'Imagine a platform like this. Will you help me develop this idea and make it into a reality?', u'entity_id': 845, u'annotation_id': 5623, u'tag_id': 354, u'entity_type': u'post'}, {u'quote': u'Les outils sont l\xe9gions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration d\xe9centralis\xe9s : Github. Tous ont une arm\xe9e de fans, mais tous ont le m\xeame probl\xe8me : si il n\u2019y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau d\xe9cor. C\u2019est comme donner des outils de permaculture \xe0 un fermier industriel : si il ne voit pas que les valeurs partag\xe9es sont un atout majeur, il restera avec ces m\xe9thodes classiques.', u'entity_id': 33747, u'annotation_id': 5622, u'tag_id': 354, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 5621, u'tag_id': 354, u'entity_type': u'comment'}, {u'quote': u'C\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.', u'entity_id': 672, u'annotation_id': 5620, u'tag_id': 354, u'entity_type': u'post'}, {u'quote': u"As we are still in the research phase, I actually wanted to stay away from thinking of a very specific solution already. There is\xa0a similar\xa0site called emotionalbaggagecheck.com, where you can either submit your thoughts anonymously or help someone who submitted a text by sharing a song and some kind words.\xa0The platform I was thinking of was more an idea of improving the communication between affected people, so that there is a lower threshold of reaching out for support when you feel bad.\xa0I was hoping to hear what experiences other people have had, what sort of stressors they struggle with\xa0and how they handle this. This doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally", u'entity_id': 11003, u'annotation_id': 5619, u'tag_id': 354, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 5618, u'tag_id': 354, u'entity_type': u'post'}, {u'quote': u', \u201cA government platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.\u201d', u'entity_id': 29961, u'annotation_id': 5617, u'tag_id': 354, u'entity_type': u'comment'}, {u'quote': u'We\u2019are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.', u'entity_id': 27810, u'annotation_id': 5616, u'tag_id': 354, u'entity_type': u'comment'}, {u'quote': u'"We\u2019are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective."', u'entity_id': 28966, u'annotation_id': 5615, u'tag_id': 354, u'entity_type': u'comment'}, {u'quote': u"We'd also gladly make use of a practical tool, perhaps a platform, to share materials, ideas, needs, etc. And being part of a bigger network to compare notes, support each other, share more, and maybe be connected with the town council infrastructure (cars, electricity, water, events, \u2026)", u'entity_id': 743, u'annotation_id': 5614, u'tag_id': 354, u'entity_type': u'post'}, {u'quote': u"Hi Alberto, thank you for your comment!\n\nThe post on FB didn't mention anything, just the travel question. But I saw it was a share from Vlad Voiculescu, so I understood in a second, even if the article that I read in november 2012 did not state his\xa0real name. But it was really not hard to connect the dots.\n\nSo in that evening we spoke for almost one hour on the phone  , then we met and I\xa0took the medcines, that was the first encounter so to speak.\n\n\xa0Basically, Vlad coordonated the whole thing, he bought the medicines at first, then he found a lot people willing to help with buying, from different cities in Europe and not only.\n\nSometimes Valeriu would pick up people from the airport, sometimes just meet them in Bucharest and took the medicines to the ones in need.\n\nI don't know how it was for other cities, but there the distances are smaller and I guess people sorted it out in a similar way.\n\nVlad also made a website: medicamente-lipsa.ro. People could acces it and find the missing drugs and the means to transport them.\n\n\xa0Not least, a movie was made after the investigation in Hotnews (the website where I read the story in 2012)\n\n\n  \n    hbo.ro\n  \n  \n    \n\nRe\u021beaua (2015)\n\nDocumentarul urm\u0103re\u0219te o re\u021bea de oameni binef\u0103c\u0103tori care cump\u0103r\u0103 din str\u0103in\u0103tate medicamente citostatice \u0219i le aduc pacien\u021bilor din Rom\xe2nia de vreme ce aici aceste medicamente nu exist\u0103.\n\n  \n  \n    \n    \n  \n  \n\n\n\nYou can see it here until september for free\xa0http://www.hbogo.ro/content/the-network-1053692950\n\n\xa0\n\nI hope this helps!", u'entity_id': 15312, u'annotation_id': 12009, u'tag_id': 1993, u'entity_type': u'comment'}, {u'quote': u'I think it would be great to involve your friend from day one!\ns/he would probably have a lot of precious insights that would be highly needed to implement the best user experience for such a scenario.\ndid you maybe elaborated the\xa0concept a little further?\nI would suggest to have a look at these\n\nhttp://urban-refugees.org/for-immediate-release-urban-refugees-to-develop-a-mobile-messaging-system-to-help-refugee-community-overcome-communication-challenges/\nhttps://www.gsma.com/refugee-connectivity/apps-for-refugees/', u'entity_id': 33800, u'annotation_id': 5626, u'tag_id': 1993, u'entity_type': u'comment'}, {u'quote': u'Innovation and openness of knowledge must become the cutting edge paradigm within universities, hospitals and healthcare policies.\n\xa0\nI\u2019ve been granted research scholarships for the past years and I use them to bring change in two main areas of education: technologies and practices of innovation. It\u2019s about bringing these two aspects, also existing in collaborative economies, communities, in hacker groups and activists promoting open access to knowledge, data and technology to stubborn, hermetic ecosystems of higher education. \n\xa0\nMy current project, a weblab named Puntozero (http://puntozero.github.io/), explores the ways in which teachers, professors, tutors and students -used to the traditional model of lecturing a class and equipping people with theoretical knowledge and in-field training- might integrate in a community of practice to innovate the way of learning. This year there are about 150 students involved. The brainstorming about proposals include more talking to the patients, who want to collaborate and surely want to see medicine more friendly, more efficient, more human. It is important to change the way we see health care - not as a prestigious, restricted profession for a selected group of professional, but as a practice that has been there for thousands of years, a huge amount of collective wisdom that pioneered and support what we call medicine and care right now. \n\xa0\nIt\u2019s fascinating to play with the idea of a healthcare student classroom where, instead of feeding people with theories, teachers would create space where students meet makers of all sorts and discuss various technological innovations with them, and spend time with their patients, getting hands on experience in various cases. By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals. Their work style would be more inclusive and horizontal, and they would be more interested in critical thinking and discussion, sharing and transparency. \n\xa0\nAt the moment I\u2019m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students. \n\xa0\nAnother one is to replace yearly reports from traineeship by an online book, accessible to everyone and encouraging discussion. And it actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they\u2019re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education. \n\xa0\nI\u2019m interested in joining the OPENandchange with the mission of tweaking and/or revolutionizing the classroom and the health care education and training. I want to create more opportunities for students to meet people who change the way care is given in different ways - by making devices, by creating informal institutions, in fablabs and elderly houses. I want to prepare workshops where makers and patients would be working along the health care providers on new solutions. And I want to empower alternative ways of giving care, outside of the formal profession, initiatives driven by values other than money - by the idea of being helpful, virtue of serving each other, and actual engagement. \n\xa0\nTherefore i would like to engage other scholars, makers, educators, archivists, patients and who else inspired by an open paradigm of healthcare in contributing to a p2p learning project to advance healthcare professions curricula and innovate where possibile and to open knowledge filed the higher education for healthcare professions. Please add your comment to participate.', u'entity_id': 524, u'annotation_id': 5625, u'tag_id': 1993, u'entity_type': u'post'}, {u'quote': u"ere could be\xa0potential for new tech \xa0- they had to make up a process for coordination, so they\xa0enabled coordination\xa0through an emergency twitter account texting to dumbphones and worked exceptionally well, as Nick's explained in his tedx. But this wasn't p2p, only\xa0for\xa0broadcasting as far as I understood", u'entity_id': 18401, u'annotation_id': 5624, u'tag_id': 1993, u'entity_type': u'comment'}, {u'quote': u'The answer is Cultivating Care through Community!\nThis is where my work comes in. As a student working on the school\u2019s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.\nIn addition, it\u2019s no longer enough to focus solely on the counseling department\u2019s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed.\nThe Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their \u201cMinerva Talk\u201d, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.\n\xa0\nWhile we still working on figuring out a lot of how we address student well being (and build this university) it\u2019s become clear that the future of student care must be holistic and not just reactive.', u'entity_id': 724, u'annotation_id': 5768, u'tag_id': 375, u'entity_type': u'post'}, {u'quote': u'The main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation.', u'entity_id': 855, u'annotation_id': 5771, u'tag_id': 376, u'entity_type': u'post'}, {u'quote': u'URGENCI \u2013 The Global Network for Community Supported Agriculture (CSA)\nSince June 2015 I am a member of the Urgenci kernel -the steering committee for the European part of the movement, and the European Research Group on CSA -with which we conducted the first ever European census on CSA -the report can be found here. Our second major undertaking for 2015-2016 was the creation of a European Declaration on CSA. This involved the research group drafting a first proposal which we had to take back to our respective countries for consultations and then collectivise everything again and come up with a final draft that was formally presented at the third European meeting on CSA (the report on that will be out soon, but here you can find out more about what we did in Ostrava). Here is the declaration and this is footage from the historical moment of its first announcement:', u'entity_id': 560, u'annotation_id': 5770, u'tag_id': 376, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 5769, u'tag_id': 376, u'entity_type': u'post'}, {u'quote': u"So let's get in the game. My nano-social company, Edgeryders , has partnered with five world-class research organizations (Bordeaux University, Stockholm School of Economics, ScimPulse Foundation) in Social Policies (City of Milan) and Digital Manufacturing (WeMake) to find the experiences like MCCH around the world, learn from them, and if possible perfect the model. Our goal is to contribute to a model of community-driven care services based on science and modern technology, but with low administrative costs and the human touch that communities have and large bureaucracies, both public and private, no. Our project is called OpenCare; the European Commission has believed us enough to support it through the Collective Awareness Platforms program .", u'entity_id': 4913, u'annotation_id': 13128, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'I am sure you will also enjoy my post on the festival...be sure that the community is in the root of all. as in the blog on open insulin it is from community to lab....it is one of the consensus I had with @winnieponcelet and @anthony_di_franco.', u'entity_id': 38882, u'annotation_id': 11859, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Me, Mayor (lol)\u2026I am Cameroonian and 34 years old. I don\u2019t want to expose the political environment of  my country here. But for a few notes, our President has spent 35 years in power (older than me) ; officially multipartism exists, but the President party is like the unique ; be Mayor means join this Party. And frankly, I am not sure that I will feel comfortable in this system. That is why I work directly with the community through advice and education and my philosophy is that local developement can be ensured only directly with/and inside the community. To support my action I have created in 2010 this school (legal) http://www.zikulumarie-claire.com/, with like 250 students every year. In this school I am doing formal education (nursery and primary) like that, I am training our future leader. I am doing informal and long life education through workshops and seminars, to empower people. I am also doing hygiene sensibilisation, with my mother, who is a retired nurse, we used to run this course : EVA (Education \xe0 la Vie et \xe0 l\u2019Amour), for sexual hygiene. @noemi  I have too much to tell, but through these actions, I feel my impact more tangible and authentic than to be mayor under this system. Perhaps one day, if the system change.', u'entity_id': 37591, u'annotation_id': 11819, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'I feel quite tempted to stop by for the OpenVillage festival in Brussels. From what I got of your website and the short video clips, it\'s a gathering of similarly switched on people as during the Open State of Politics Camp. Dealing with key questions our modern societies and economies are up against. The role of community is becoming more and more important for moving on from a mainly individualistically shaped society. A few days ago I watched the BBC Doco "The age of self" and was struck again by how important our work here in Nieklitz and in all the other communities and projects around the world is. Long story short: I wanna come and would like to contribute with some input or workshop. I have a solid background in natural building, especially in building Earthships and could give an input on Earthship technology, the global movement and about social dynamics/personal growth potential in practical building workshops. I also could give an input on the Wir bauen Zukunft project, our approach to develop a project community and what we\'ve learned so far. Another option could be to run a little Case Clinic workshop, a format I\'ve learned during a U-Lab course which trains people in active listening.\n\nKeep up the good work!!!', u'entity_id': 37670, u'annotation_id': 11714, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'I asked everyone I got the chance about their involvement and how the community develops. The points below are valuable takeaways for me and hopefully for edgeryders OpenVillage in-the-making:', u'entity_id': 36387, u'annotation_id': 11704, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'Hospital to Home team striving for a healthier and happier Derby', u'entity_id': 31827, u'annotation_id': 12083, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe.\nFor OpenVillage session(s) \u201cfor me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels\u201d", u'entity_id': 6360, u'annotation_id': 5844, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'The main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation.', u'entity_id': 855, u'annotation_id': 5843, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'I\'ve cut and paste the text below\xa0from the web - just wondered if anyone had existing links as it sounds as though there\'s potential connections for OpenCare in general?\n"Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things).\nNuka was developed in the late 1990s\xa0after legislation allowed Alaska Native people to take greater control over their health services, transforming the community\u2019s role from \u2018recipients of services\u2019 to \u2018owners\u2019 of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of \u2018working together to achieve wellness through health and related services\u2019. Southcentral Foundation provides the majority of the population\u2019s health services on a prepaid basis."', u'entity_id': 6441, u'annotation_id': 5842, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization\xa0in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security. \xa0The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project. \xa0Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practic", u'entity_id': 14771, u'annotation_id': 5841, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Thanks so much for the beautiful description. \xa0This is a conversation we\'ve been recently having at Woodbine. \xa0@yannick i think it is really important how you combine the idea of space with the idea of care. \xa0Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself. \xa0Then with the ever increasing rent, you become more and more attached to "work" or the struggle to compile a bunch of part time jobs together. \xa0Hence the ubiquitious greeting in the city is the "I\'m so busy, just really busy" idea, that once said is usually completely understood to be a chronic state. \xa0But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments. \xa0To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city. \xa0Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other. \xa0In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven\'t felt in the city. \xa0As one of our comrades said, "we left the capital of the world, and in this little town, our world just got so much bigger." \xa0\nExcited to continue this conversation and see the work you all are doing! \xa0Be well.', u'entity_id': 27815, u'annotation_id': 5840, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'@Alberto, thanks for the comments. \xa0While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health. \xa0At this point in NYC, there is still infrastructure for primary care and physical care within institutions. \xa0In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more "primary care" functions. \xa0But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health. \xa0In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here. \xa0We are thinking of treating acute mental health episodes, but to form the foundation for "preventative" communal mental health.', u'entity_id': 26065, u'annotation_id': 5839, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'WHAT?\nA social enterprise beer brewing club.\nWHY?\nSt. James\u2019 Hospital,\xa0Dublin,\xa0commissioned a service design project\xa0in search of\xa0\xa0a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing\xa0the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.\xa0\nThe hospital is based\xa0in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City\'s walls \u2013 lands united with the city, but still keeping their own jurisdiction (hence "liberties"). The area\'s history is still very relevant to the health of its residents.\nBeing outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world\'s largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties\xa0is a city neighbourhood of opportunities and innovation, but its history -\xa0positive and negative -\xa0pervades. Although having undergone much urban regeneration as well as gentrification,\xa0the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing\xa0in the Liberties today.\xa0\nOn researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals.\nThe\xa0project takes its inspiration from the highly successful Men\u2019s Sheds mental health initiative whose\xa0motto is, \u201cmen don\u2019t talk face to face, they talk shoulder to shoulder.\u201d\nHOW?\nThe\xa0brewing club for men over fifty\xa0in the locality \u2013 where they create a low percentage beer brewed by locals,\xa0for locals \u2013\xa0harnesses existing local\xa0skill sets of the hundreds of Guinness factory retirees.\nThe brewing club, "Sl\xe1inte", takes it name from the Irish word for "cheers", also meaning "health". The aim of the club is to\xa0encourage\xa0more responsible drinking through\xa0appreciation of the brewing process\xa0as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin\u2019s Active Age Conference 2012.\nWith Ireland\'s craft beer market having hit\xa0\u20ac59 million in 2016 (up form \u20ac40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club "Sl\xe1inte" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health.\nUSER JOURNEY', u'entity_id': 841, u'annotation_id': 5838, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 5837, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a "Common House" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It\'s quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That\'s partly due to economic factors.\nIt is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I\'d like to focus just on one of the challenges that I see here: how we engage with our own and each other\'s well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally.\nSharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.\nWe do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?\nThis brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on?\nThese are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other\'s resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.', u'entity_id': 830, u'annotation_id': 5836, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"Wow @WinniePoncelet @NiekD . Unforunately I do not have a name of the Belgian researcher but I have been working on very similar themes in Cape Town when employed by a local org\xa0. I focused very much on the Health Impact pillar of the organization, which adopted a participatory approach in its educational programmes. I managed 2 projects for the org that focused on Community Care Workers who were primarly the ground fighters for TB and HIV. We used Digital Story telling, Theatre and Photovoice as methods for engagement which were very successful in relaying lived experience for the sake of education. I'd be happy to share key learning. This video provides feedback from Community Care Works, and their reflections on the project:\xa0https://vimeo.com/180156715 \xa0and this video features one Digital Story from a community resident:\xa0https://www.youtube.com/watch?v=dy1PHfUMCQY.", u'entity_id': 33803, u'annotation_id': 5835, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people\u2019s caring and collaborating capabilities and doing so, creating new forms of care-related communities.', u'entity_id': 832, u'annotation_id': 5834, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'It is paradoxical and completely logical at once! I guess, in its own way, this is fairly typical of the idiosyncratic paths taken by communities of care. You work with the tools you find lying around, and they might be highly specific of your place and time.', u'entity_id': 15044, u'annotation_id': 5833, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"What people experiencing mental health difficulties need most is to be shown compassion, empathy, a voice, to be listened to, to be believed in, somewhere to go where they will be given hope of a more meaningful life.\u2019\nCos\xe1in Community Wellness is a recent\xa0initiative to develop a peer-led community-based support system for people with emotional distress and mental health issues, and to promote wellness for all. Cos\xe1in is the Irish word for \u2018pathways', reflecting our belief in different paths not single roads, and the guidance, wisdom and support that we can find in the stories of each others individual journeys. All quotes within this article are from research performed by Galway Mental Health Services Consumer Panel, the local representative body of mental health service users for the geographic region.\nGMHSCP advocates for supports and services which are fit for purpose from the perspective of service users, and the integration of users of services into the design, \xa0development and delivery of services, working in partnership with the Irish Health Services (HSE) based on the value of our lived experience of current systems of care, and the evidence of our own healing processes.\n\u2018The most effective help I have experienced over the years, having had years of medication, psychotherapy, hospitalisation, is the support of peers, where I am treated as normal, with kindness, not judged, and not expected to conform to the medical model of treatment.\u2019\nWhere progress was slow or absent within the system, we took\xa0it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because\n\u2018it's a community based project concerned with 'well-being' which is preparing fertile ground for the empowerment and transformation of people, individually and as a group. It's organic growth reflects the personalities and desires of the people involved, making it of and for the people.\u2019\nOur belief is that properly resourced and equipped communities can provide more effective intervention in cases of crisis,\xa0care in a more person-centred and human manner, and both at a lower cost than the dominant acute-oriented, clinical and biomedical approaches. We believe that only approaches that are grounded in local communities and emerge from their dreams and aspirations\xa0can meet the needs which we are presented with in the time that we have.\n\u2018My experience of large organisations is that the individual gets lost in the system and become just another number\u2026 I\u2019m sick and tired of waiting for the HSE to offer people the support they want\u2019\nWe also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of\xa0autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions.\n\u2018Being with people who are doing whatever we can to have our lives the way we want them, seeing the evidence that people can succeed, that we can make a difference \u2013 all this has a positive effect on my own mental health, self-esteem and my ability to shape my life the way I want it.\u2019\nWe developed our initiative over the course of the Galway 2020 Bid process, using \xa0participatory design exercises that brought together a range of groups and individuals including\xa0independent therapists,\xa0health professionals, service users and patients,\xa0and other interested parties who are seeking to develop new models of community-based health promotion and care.\xa0We then used the blank canvas of a disused city building, visioning and combining elements of artspace, green makerspace, and wellness supports that were brought together using the concept of an\xa0integrated cultural and community hub. During this time we came into contact with EdgeRyders and the Opencare research project, and welcomed the opportunity to form productive partnerships at European level with groups and initiatives with similar ethos.\nOur current operating model exists with the support of Galway City Museum, who have provided us with the use of a room one day a week for prototyping and co-design. This is taking place as part of the Galway City Cultural Strategy, which seeks to use \xa0cultural resources and infrastructure for wellness supports and public health.\xa0These sessions were an extension of the earlier co-design process, deployed in a real-life environment for feedback from stakeholders and re-design. Our sessions to date have included artistic and creative process, peer support and educational sessions, based on the demand from service users.\xa0\nCurrently delivered on a volunteer basis for proof of concept, our intent is to progress towards a cultural space and \u2018crisis cafe\u2019 on a social enterprise model, with a welcoming cafe-type front-of-house drop-in space that can be used as an open studio and learning space, with a supportive backstage of more intensive interventions, therapies and supports for those people in emotional distress. Our model is grounded in the value and authenticity of provision of supports and services that are delivered by people with the direct personal experience of the situations in question, and the expressed need based on our research for appropriate creative outlets that support emotional wellbeing and generate meaning and community for the participants.\n\u2018in Irish culture mental health tends to be seen as a failing by an individual, of an individual, in an individual. This attitude views the natural processes of emotional distress and recovery through a lens of pathology, individualised blame, guilt and shame.\xa0In contrast, rather than attempt to seek what Zygmunt Bauman called \u2018individual solutions to collective problems\u2019, an impossible task, we felt the need for the sake of our collective sanity, to use an approach based on collective support and interdependence.\nOur story is just beginning.", u'entity_id': 757, u'annotation_id': 5832, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"care services \u2013 which today we call health and social care \u2013 were provided by communities: family members, friends and neighbours would check on each other to make sure everyone was fine, keep an eye on each other's children or elderly parents, even administer simple medical treatments.", u'entity_id': 5510, u'annotation_id': 5772, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"They involve people in vulnerable situations where dynamics in community connections, or lack of, play a significant role. Can Guy/Alberto's network science perspective help us to make visible and understand these social flows?", u'entity_id': 5479, u'annotation_id': 5773, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )", u'entity_id': 10261, u'annotation_id': 5774, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Burden of care should be spread among people.', u'entity_id': 5405, u'annotation_id': 5776, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.', u'entity_id': 7673, u'annotation_id': 5777, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Care happens in networks.\xa0People take care of each other. They seek advice, medical help and moral support from each other. They exchange knowledge and share resources. They meet, interact, and work together.\xa0And, of course, no human can live well if he or she disconnects from the fabric of society at large (in recent times, care also happened in big bureaucracies, but that approach has issues. Here we look for something better).', u'entity_id': 5260, u'annotation_id': 5778, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"Some years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:", u'entity_id': 10231, u'annotation_id': 5788, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'He explains how\xa0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.', u'entity_id': 10231, u'annotation_id': 5789, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Communities need to be nurtured and supported and it\'s by being "in them", not by doing things "to them" that change happens.', u'entity_id': 10231, u'annotation_id': 5790, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20113, u'annotation_id': 5791, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"It seems to me that the experiences you describe are all community-based. It's always people, it's always peer-to-peer. People give each other acceptance,\xa0encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make \u2013 if only because the people in\xa0these experiences have\xa0two\xa0ways to get acceptance and validation, one through material achievement and one through the community.", u'entity_id': 6719, u'annotation_id': 5792, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'The expression "taking care of something" as a German is a rather rational, dry and goal-oriented task. It somehow misses the core of its literal meaning which is a soft, emotional and gentle interaction. So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back? We discussed the question of how can something seemingly burden full turn into a joyful engagement. How can we overcome this cognitive dissonance and what is that undefined obstacle that holds us \u200bback. Because it\'s not laziness. It\'s not carelessness. Maybe it\'s a combination of helplessness (of where to start, what to focus), being overwhelmed (by one\'s own life and tasks) and alone (with an ambition too big for one person). And maybe the answer of today is community.', u'entity_id': 650, u'annotation_id': 5793, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'We need to be working together and help each other. thats actually the only way to get out of this fucked up World.', u'entity_id': 651, u'annotation_id': 5794, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'One of the challenges of alternative care provision is evolving tools that enable it around the needs of communities that use them, and support those who develop them.', u'entity_id': 8632, u'annotation_id': 5795, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'ocus should be on shifting administrative tasks from healthcare professionals (called facilitators/mentors in our case), so maybe an App (Buoy?) could let the participant (the patient) check in', u'entity_id': 24641, u'annotation_id': 5796, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"3) Collective treatment - something about the nature of receiving shared treatment with other people seems to have an effect on people. Perhaps it cuts through the common Western idea of illness as something private, secret and shameful - whatever it is, sharing one's vulnerability and the act of seeking support and help with other community members seems to have a profound psychological charge.", u'entity_id': 671, u'annotation_id': 5797, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"and, of course, the community clinic model is unique to acupuncture because you can't treat multiple patients at once with most other modalities!", u'entity_id': 15329, u'annotation_id': 5798, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'communities endowed with both care problems\xa0and\xa0care solutions, equipped with collective smarts and open knowledge.', u'entity_id': 26032, u'annotation_id': 5799, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'The space is meant to be a means to involve community members, understand the care-related skills they have, and be an informational center.', u'entity_id': 521, u'annotation_id': 5800, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'community-based approach', u'entity_id': 20474, u'annotation_id': 5801, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'In conclusion, the refugee crisis gave rise to a strong solidarity network and also an opportunity for local communities and the society in total. An innovative strategic plan seems to be a necessity, in order to coordinate and manage all the available resources successfully.', u'entity_id': 550, u'annotation_id': 5802, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'Make a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half "upwards" and half "downwards".', u'entity_id': 13504, u'annotation_id': 5803, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'We propose that communities are good candidates for being caregivers, because they are fair (they share the burden across individuals), efficient (allocation of who takes care of whom is based on self-selection: low overhead, you give care when and where you are readiest/most motivated to do so, receive it in the time and domain of your greatest need), and retain a human touch that state-and private sector provided care cannot (you care for your own, etc.). This is predicated on\xa0the givers and receivers of care recognizing each other as one: everyone is part of the same "we". When a person is recognized as\xa0not\xa0part of the "we", the community\'s incentive to care for her fails.', u'entity_id': 28468, u'annotation_id': 5804, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.', u'entity_id': 5886, u'annotation_id': 5805, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'i feel the strength of a group with a shared mission and vision, soemthing that is strongly missing the modern individualistic society, and by the way it is based on a shared concrete experience of care.\nthis is many many are looking for as a way to sense making postmodernity values, for sure attarct intersted to more concretely understand how it works, how could develop, how could go beyoing queens and the founding group.\nhow much it is posisbile that co-living communities become a point of reference to each neightboorhood social growth...and then a nertwork of them become soemthing more impactful...', u'entity_id': 16165, u'annotation_id': 5806, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in\xa0Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other\xa0rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief\xa0strikes, the individual is embedded in a nurturing local community that can help them heal.', u'entity_id': 8509, u'annotation_id': 5807, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"My friend Denis Ngala at\xa0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\xa0health and cultural knowledge was telling me about the work that was being done in Kenya\xa0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\xa0he was communicating\xa0was that recovery was not the problem of the victim\xa0of torture\xa0alone, but that it was the\xa0community's task. They were working\xa0to educate the community around how to support the individual live beyond\xa0what they had lived through.", u'entity_id': 16456, u'annotation_id': 5808, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Here\'s an example of "community approach" to mental health care in Armenia. It is a tiny drop in the sea but still I am excited to know it exists here, even though it\'s rather a "provider vs vulnerable group" approach as\xa0\xa0@Alberto put it.', u'entity_id': 27794, u'annotation_id': 5809, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'These stories are quite ghastly. The silver lining is that communities tend to step into giving\xa0care, and to do so more when the care problem is "close to home". In the end, reproductive health and control over one\'s body are an absolute, so prohibitions don\'t work. People go underground, organize informal networks, and things happen anyway.\xa0\nAnd this means that, maybe, a good way to do public policy on care is just to let people free to provide for each other, then step in to help with those which are obviously the most pressing concerns, such as this one. Concerns are revealed by the efforts put into addressing them, even when that means breaking laws and running the risks associated with it.\xa0\nOf course, my remarks refer to a theoretical world without politics, where all decision makers are serene, evidence-oriented and well-meaning.', u'entity_id': 19626, u'annotation_id': 5810, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'At the time, I had proposed we roll out a challenge on autonomy and responsibility. Pre-welfare states (19th century), welfare was basically invented by European mutual assistance societies, in turn part of the workers\' movement. I imagine that, in the early days, these societies were small enough that the choice of treating someone would visibily drain the common pool of resources. So, in those days, maybe European factory workers thought a bit more like the Amish. A modern-day version of that, though I only know anecdotes about it, is implemented by @lasindias .\xa0\nI think autonomy\xa0is also an interesting scenario in terms of policy, and fits well into @Lakomaa \'s and @Tino_Sanandaji \'s institutional economics framework.\xa0\nMy summary from the article:\xa0\n\nThe Amish refuse to have insurance. "When someone gets sick, the church collects alms to help the patient cover expenses."\nThis might happen at a time when the community has other objectives as well ("setting up a farm for a young couple"). You can ask of the community to support your treatment, but its\xa0costs are not simply discharged into an anonymous "system": they are borne by your own brothers and sisters. As a result, everyone focuses on not spending more money than is necessary, and\xa0"[Amish] communities are highly interested in health education and disease prevention".\nFor this reason, the Amish use genetic screening of children. Prevention is so important that its benefits trump the disadvantages of dealing with the world at large.\nThey develop their own treatments (one for burns is described in the article). They navigate, with some difficulties, the interface with the mainstream medical world: clinical testing etc. These treatments tend to be very cheap.\xa0\nCommunities negotiate discounts, which hospitals are willing to offer in exchange for payment in full at the time of service. In one example (a child treated with surgery for colon cancer) price was negotiated down to 19,000 USD from 172,000, a 90% discount. "For Americans with health insurance, it may come as a surprise that hospital costs are negotiable".\xa0\nThe Amish don\'t sue. "When the Amish told [a doctor]\xa0they understand doctors are human and make mistakes, he had to pause to let that sink in. To them, he was not simply a member of the medical establishment, but an autonomous individual doing his best, given the choices and information before him."', u'entity_id': 14083, u'annotation_id': 5811, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 5812, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'community" as your most important resource in coping with all these problems. Several people here seem to agree with you. This suggests that a good way to help mental health patients might be to turn every one of them into a healer for others, participating into a community healing itself. This came up in the story by @alan . His doctor suggested he gets involved in mental health advocacy immediately after making the diagnosis (full story). What do you think?', u'entity_id': 20576, u'annotation_id': 5813, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'It is a little like a digital advertising screen, broadcasting a single, one-way message to a public who have no choice but to receive it. Just like a digital advertising screen, this kind of healthcare can seem cutting-edge, innovative and technologically impressive, but its values do not respect the uniqueness of individual or place, nor do they promote communal solidarity and empowerment. So long as this is the case, communities will continue to vote with their feet, seeking out new forms of adaptive Open Care that address their real mental, physical and social needs.', u'entity_id': 549, u'annotation_id': 5814, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'But maybe the reason of this high rate participation in the network of cytostatics is older than we think, with roots in the communist era. Back then, there was a solution for everything: from lack of food to lack of clothes. Everyone knew someone who could help. The only area not available for this kind of help was healthcare. Both doctors and patients were helpless against a system that didn\u2019t truly provide for its beneficiaries. So people developed a true phobia of hospitals, seen as horrible places, dirty and dangerous, a place where some medical act was provided, but where the family took care of the sick person in the most common sense of the term: from bed sheets to food and hygiene products. The 80s and the 90s were the worse years in terms of healthcare.\xa0 The money was less and less, the needs higher.\nThe Network did not come out of nowhere. It came from a long series of malfunctions and struggles, from a time\xa0 filled with nightmares that still populates one of the best Romanian doctor\u2019s dreams.\nThe production of this\xa0article was supported by\xa0Op3n\xa0Fellowships\xa0-\xa0an ongoing program for community contributors\xa0during May - November 2016.', u'entity_id': 517, u'annotation_id': 5815, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'traditional community-based approaches to care-giving that are human-centred and sustainable.', u'entity_id': 758, u'annotation_id': 5816, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'The answer is Cultivating Care through Community!\nThis is where my work comes in. As a student working on the school\u2019s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.\nIn addition, it\u2019s no longer enough to focus solely on the counseling department\u2019s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed.\nThe Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their \u201cMinerva Talk\u201d, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.\n\xa0\nWhile we still working on figuring out a lot of how we address student well being (and build this university) it\u2019s become clear that the future of student care must be holistic and not just reactive.', u'entity_id': 724, u'annotation_id': 5817, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u"Hi Noemi, in response\xa0 to your post, I would say we want to be inter- dependent,\xa0 not independent!\xa0\xa0\xa0 I guess I wrote the original post in rather a hurry, in response to the Open&Change\xa0 call, so\xa0 it probably didn't get it quite right.\xa0\xa0 I see our project as forging some third way between state or charity\xa0 ownership on the one hand, and private for-profit ownership on the other.\xa0 it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.\xa0 I envisage a movement of care homes,\xa0 highly networked,\xa0 helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are\xa0 starting slowly", u'entity_id': 24250, u'annotation_id': 5818, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"Perhaps a graduated move towards care premises would be good, whereby a suitable\xa0one could be found in the local community and the potential resident spends some time there to build connections and tie them to existing links in the community outside, rather than that person going through an instant switch involving the sale of their own house and them being suddenly moved in to a care premises. Ideally, children and other family would be near enough to visit and spend time there too, but again we need societal change in this area. We seem to be more keen on housing our elderly relatives in care homes in the UK than say, South East Asia or Southern Europe. More interaction should be encouraged. (I've seen some families who barely see their parents once they've been moved in to a care home!)", u'entity_id': 27817, u'annotation_id': 5819, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'I do feel interaction with local community institutions would also help - retaining an existing GP, interacting with local schools and even nurseries, community gardens, parks and the like - though obviously this would depend on the mental and physical fitness of the person concerned. Fundamentally we still see care homes as a last resort, rather than a good place to be, and a large part of that is due to the lack of community interaction. I see some sheltered or assisted housing, where there are good communal facilities and assistance available if needed, but the person is otherwise living in their own flat or rooms... Such premises could be combined with a more typical care home, so there is a mix of people within the institution, though this could present issues handling medical needs.', u'entity_id': 27817, u'annotation_id': 5820, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'It is something that communities can do very well. Comparative advantage kicks in: it makes more sense for smart communities to focus on the relatively health and help them stay healthy, and for professional, capital-intensive orgs to dealt with acute conditions and non-self sufficient individuals.', u'entity_id': 30534, u'annotation_id': 5821, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'Another benefit found was that building such local links ensured the elderly were "monitored" as in an eye was kept on their health and quality of life, and people could be referred to locally available facilities that they may not have been aware of or may have been reluctant to request or attend.\nDefinitely think the time is ripe for new approaches, and also that a new willingness to try these is developing on the part of CCGs, healthcare trusts and local councils. Hopefully this will extend to national government, and they will allow local solutions to develop from the ground up. They are doing so in other health sectors, so there is hope. The CQC - given its very specific mandate and structure - may be another issue! But we can but try!', u'entity_id': 31537, u'annotation_id': 5822, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'a side effect of doing culture is (over time) a reduction in treatment of acute health conditions.\xa0\nI am starting to think that this is where most of the impact of communities on care comes from. Communities can "corral" us into avoiding destructive choices (heavy drinking, overeating...). They provide support in wellness/preventative activities, and that reduces human and financial costs of havingn to treat acute afflictions down the line.', u'entity_id': 17145, u'annotation_id': 5823, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"I think that's the point of being a collective, right?\xa0It's relevant to have a shell like AAE which enables its different members and people connected to it to do things based on what interests them - it means that when you do an arts event there are people who run workshops on the side and activities that have a wellbeing component. It is community care at its core, because they are social activities where people inevitably learn from each other. Does care need\xa0a clearly\xa0spelled out mission? I don't know. I've always liked how AAE feels very free, but at the same time I'm wondering if working together with Galway 2020, consumer panels in Cosain etc\xa0and needing to projectify in a more structural way is useful, and the more strategic level taken since your early days helps your work or not?\xa0Obviously, doers will always be doers no matter what I'm just wondering though.", u'entity_id': 19282, u'annotation_id': 5824, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u"In general, we know that reactive systems that rely on sick patients showing up at facilities don't achieve equitable health outcomes. Health systems should be proactive and timely by design: mobile tools have an important role to play in bringing health workers to families' doorsteps often and early.", u'entity_id': 564, u'annotation_id': 5825, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'"Within a matter of hours, the team can turn a dusty schoolhouse, or whatever building is available, into an equivalent medical ward where sight-restoring surgery is carried out to comparable standards found in the developed world." (source)\nThis looks like a good fit for community-driven care. You still need ophtalmologists, but the infrastructure around the treatment is minimal and can be conjured by communities. So... is it happening?', u'entity_id': 14907, u'annotation_id': 5826, u'tag_id': 377, u'entity_type': u'comment'}, {u'quote': u'The care communities of Greece are the unsung heroes of this crisis. They formed quickly, evolve slowly and are present where both and the public sector fail: providing free, open care to the most sensitive target groups (ie. homeless, elderly, immigrants). Given the financial, political and administrative support they diserve, these communities could transform the game, and offer the hope of recovery to all Greeks, but also Europe as a whole.', u'entity_id': 736, u'annotation_id': 5827, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'Community-based initiatives contribute in a lot of different ways to the well-being of a community and the people participating. These contributions can take the form of directly supporting people and communities through giving them access to education, healthy food, social support, nature, informations about political and administrative procedures. Indirectly they also allow the development of a culture of mutual help, sharing and empowerment. This post is a description of what we have learned about care structures in communities during our years as community activists building Prinzessinengarten an urban garden in Berlin.\nBut let\u2019s start from the beginning\u2026.', u'entity_id': 507, u'annotation_id': 5828, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'In taking over responsibilities in issues that affect the whole society - refugees, climate change, social and ecological justice, to name just a few - community-based and grassroots initiatives play an increasing role in tackling these challenges and their effects on the local level. They are breeding grounds for social innovations and new bottom-up-strategies. Often people take initiative when traditional or institutional forms of care and support decline or do not meet people\u2019s needs. Community gardens and urban agriculture- the field in which I am personally engaged- can serve as a good example. Without being part of planning, or political programs, these places are mostly created by local, self-organized initiatives. Based on local engagement and alternative forms of economy and often without public or financial support, community gardens contribute to the well-being, social inclusion, healthy and sustainable lifestyles, biodiversity, the physical- as well as the social climate. Not only they contribute to the physical health of their participants, but also to their sense of dignity and self-esteem.\nThere is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.\nOver time, this situation can result in what you might call an \u201eactivism-burnout\u201c. When this happens, physical, mental, and social damages are far too often just seen as a personal or biographical drama. These individual burn-outs are likely to be accompanied by a weakening or even a collapse of the organizations and initiatives that are often carried by the engagement of single individuals. The disintegration can lead to a situation where an organization loses knowledge, expertise, networks, and spirit.\nFor the reasons mentioned above, community care should also include structures to support the people that are directly invested in it. It should create securing and supporting networks. Instead of competing, it should allow people from different initiatives in different fields of engagement to share their knowledge of failure. There should be at once structures of collective learning and consultancy, which at the same time help the individuals to find spaces of trust and recreation. With the Neighborhood Academy, we started informal meetings with members of different groups and initiatives, not only to exchange experience and knowledge and to broaden networks and alliances, but also to deal with stress, conflict, fear, doubt, and failure on a more personal level. Even though this is just a tentative beginning, we experience a need for this kind of care and support structures, which was previously not expressed. Often issues related to the stressful conditions of organizations and community initiatives are externalized into the private and infuse personal relations . Therefore on a structural level, we see these caring structures also as a\xa0form to win even when you lose.\nCommunity groups often focus on single questions, spaces, conflicts. They often react under economic and time pressure to immediate problems. They act within marginalized or weak political and economical communities. They deal with institutions and stakeholders with more time, much power, and resources whereas they rely on limited personal resources or precarious funding. Simultaneously there are a lot of joy, learning and personal empowerment involved as well as a sense of a meaningful life and community relations. However, the risk of failing is high, which can lead to frustration and disintegration.\nCommunity care structures can help to ease this stress not only in giving support but also in a form of what we call \u201ecollective learning\u201c. They can work as an archive for the knowledge, the experiences and know-how being created in grassroots and community initiatives. Thus, they allow activists to see themselves not only as part of a\xa0singular local fight that you might win or lose\xa0but as contributors to a collective living memory.', u'entity_id': 507, u'annotation_id': 5829, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'C\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.', u'entity_id': 672, u'annotation_id': 5830, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community\u2019s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.', u'entity_id': 741, u'annotation_id': 5831, u'tag_id': 377, u'entity_type': u'post'}, {u'quote': u'I\u2019d love to come to the OpenVillage Festival in October because I want to share my experience with others, continue to build a strong African community of biohacking, shape strategies for the use of Open science in healthcare and mostly, learn from others\u2026\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commenteducation\n\n  \n    \n      Cancel\nSave', u'entity_id': 37182, u'annotation_id': 11823, u'tag_id': 357, u'entity_type': u'post'}, {u'quote': u'I feel quite tempted to stop by for the OpenVillage festival in Brussels. From what I got of your website and the short video clips, it\'s a gathering of similarly switched on people as during the Open State of Politics Camp. Dealing with key questions our modern societies and economies are up against. The role of community is becoming more and more important for moving on from a mainly individualistically shaped society. A few days ago I watched the BBC Doco "The age of self" and was struck again by how important our work here in Nieklitz and in all the other communities and projects around the world is. Long story short: I wanna come and would like to contribute with some input or workshop. I have a solid background in natural building, especially in building Earthships and could give an input on Earthship technology, the global movement and about social dynamics/personal growth potential in practical building workshops. I also could give an input on the Wir bauen Zukunft project, our approach to develop a project community and what we\'ve learned so far. Another option could be to run a little Case Clinic workshop, a format I\'ve learned during a U-Lab course which trains people in active listening.', u'entity_id': 37670, u'annotation_id': 11712, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'At Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health. \xa0We have been experimenting with different projects and finding ways to build community. We\u2019ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of \u201cskill shares\u201d, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and ca', u'entity_id': 6376, u'annotation_id': 5702, u'tag_id': 357, u'entity_type': u'post'}, {u'quote': u'The CAPE Project has a low entrance barrier for collaborators, participators, and community builders. With that said, however, there can be a substantial learning curve when it comes to acquiring a comprehensive understanding of what is actually being proposed by the Project. It is important to remember that this community proposal represents an entirely different linguistic worldview than most (if not all) other worldviews present in modern society. Fundamentally, the Community\u2019s design describes an entirely divergent way of living and of understanding reality than the many worldviews expressed among the current population of the planet. This can present a significant motivating challenge for those interested in this direction. The design specifications are dense in content and many individuals who read them for the first time feel like they are learning a new language and integrating a new worldview, which takes time and requires internal processing.', u'entity_id': 765, u'annotation_id': 5700, u'tag_id': 357, u'entity_type': u'post'}, {u'quote': u'Also about wellbeing, this ties nicely to what @johncoate wrote above: need for codification (via allegiances, settling rituals/practices, social contract, decision making\xa0model or what you want to call it..):\xa0\nthere is no such thing as a perfectly inclusive space. If you try to include everyone, you\u2019ll include people whose behaviour excludes others. Community is defined by its boundaries, so the question becomes, where do we want to draw our boundaries? What behaviours do we want to include? If someone is getting close to a border, how do we want to treat them?\xa0(source)', u'entity_id': 19718, u'annotation_id': 5699, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u"I can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco\xa0where people gather in parks in the evenings and bring their tagine out to cook\xa0and mingle while enjoying the cool breeze from the Atlas mountains...", u'entity_id': 15186, u'annotation_id': 5698, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'eople understood there is a strategy and structure, so they get a sense of belonging. If everybody contributes something, we become as a community.', u'entity_id': 541, u'annotation_id': 5697, u'tag_id': 357, u'entity_type': u'post'}, {u'quote': u'Hi there, i\'m following this interesting discussion. I wonder if making possibile for the people inside the camp to be trained to welcome coming refugees (e.g.: moms helping with the arrival of next mothers in terms of understanding the needs, welcoming mothers, showing them around the camp and the area, taking contacts with the staff) and let them re-configure the camp as a collective action taken by the guests themselves to welcome better new refugees might help to overgo frustration and lack of communication. Having a daily goal -especially a shared one- might help and leaving one day the camp knowing that you did a part to make a better place of it would turn a "senseless part of my life" in a good memory of commitment and engagement.', u'entity_id': 24325, u'annotation_id': 5696, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'Inspiring, @KiraVde and @ivan (welcome back to both of you!). But I don\'t think it\'s quite that simple. "Being different", going by a different value system, is itself entropic. Here\'s why: to accomplish anything, we humans need other humans. Other humans are attracted by "successful" (as per the dominant canon of what "successful" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your\xa0chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners.\xa0So, being perceived as successful increases your chances of actually being successful.\xa0\nThat\'s not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.\xa0\nAn unfortunate consequence of this is that, the more different you want to be, the more energy\xa0you need to invest promoting yourself. The message is "look at me, I am not a failure, I am a success by my own measure". Social media are full of this, often cloaked in hyper-individualistic narratives, of the "I quit my day job to follow my dream" type. Which is ironic, because\xa0hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need\xa0for social acceptance.', u'entity_id': 24963, u'annotation_id': 5695, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'One thing it has brought into stark relief for me is the interplay between using Opencare projects to try to build community [as well as make people healthier], as is often the case with Community Acupuncture projects, and the sort of thing that is possible when strong bonds of solidarity [being poor, being Amish] already exist.\nUnfortunately, in much of Europe, it seems like many people have used rising living standards as a way of stepping out of engagement with community and society - and it is only when economic or other disasters strike that they are forced into connection with one another once more.\nThe best way to deal with the uncertain futures ahead would be for people to start building those localised, horizontal connections beforehand - but the cynic in me suggests that they will always wait until necessity forces their hand.', u'entity_id': 20101, u'annotation_id': 5694, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 13152, u'annotation_id': 5693, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'In the language we use here in Edgeryders, you are working on a community and documentation for it to operate on common knowledge. There are also opencare\'s main elements. This is the community equivalent of what venture capitalists call "scaling". You extend your reach, but without large money investment and unwieldy hierarchies.', u'entity_id': 18433, u'annotation_id': 5692, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'build a health community.', u'entity_id': 521, u'annotation_id': 5691, u'tag_id': 357, u'entity_type': u'post'}, {u'quote': u'We will try to build up a community inside the camp, where everyone is an active part.', u'entity_id': 27799, u'annotation_id': 5690, u'tag_id': 357, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 5689, u'tag_id': 357, u'entity_type': u'post'}, {u'quote': u'still volunteering in groups (garden caring, swimming pool fixing, legal affairs, food purchase)', u'entity_id': 743, u'annotation_id': 5688, u'tag_id': 357, u'entity_type': u'post'}, {u'quote': u'a story how a team started a medical camp with the intention to help as amany people as possible who otherwise would have not received care,\n\nMedical camps have been running in partnership with the villages of Bupsa and Bumburi attract local people from miles around, many of whom walk for many hours and often days to attend the camps. These medical camps are led by Nepalese professionals who are assisted by qualified volunteers and medical and dentistry students from the UK.\n\nThe long and expensive journey to the hospitals in Laksha and Kathmandu (sometimes taking days) are out-of-reach for the majority living in these low-income communities. Their main source of income is from subsistence farming and small profits are often shared throughout the community. So as you can imagine, when word gets out that these clinics are nearby, villagers flock to them in the hope of securing a cure for their health issues.\n\n\xa0There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication.\xa0The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa\u2019s monastery.\n\nThe group that started the initiative were limited to leftover equipment from the previous clinics\xa0and a small amount of supplies that they carried in with them.\xa0 One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from\xa0accessible healthcare.\n\nRead the full story here: \xa0http://wildernessmedicinemagazine.com/article.asp?id=1026\n\n\n  \n    mmtrust.wordpress.com\n  \n  \n    \n\nWilderness Medicine in Nepal\n\nMoving Mountains runs small and mobile medical camps in the remote villages of Bumburi and Bupsa, along with the surrounding villages in the Solu-Khumbu region of the Nepalese Himalayas. These medi\u2026', u'entity_id': 734, u'annotation_id': 12048, u'tag_id': 1996, u'entity_type': u'post'}, {u'quote': u'a story how a team started a medical camp with the intention to help as amany people as possible who otherwise would have not received care,\n\nMedical camps have been running in partnership with the villages of Bupsa and Bumburi attract local people from miles around, many of whom walk for many hours and often days to attend the camps. These medical camps are led by Nepalese professionals who are assisted by qualified volunteers and medical and dentistry students from the UK.\n\nThe long and expensive journey to the hospitals in Laksha and Kathmandu (sometimes taking days) are out-of-reach for the majority living in these low-income communities. Their main source of income is from subsistence farming and small profits are often shared throughout the community. So as you can imagine, when word gets out that these clinics are nearby, villagers flock to them in the hope of securing a cure for their health issues.\n\n\xa0There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication.\xa0The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa\u2019s monastery.\n\nThe group that started the initiative were limited to leftover equipment from the previous clinics\xa0and a small amount of supplies that they carried in with them.\xa0 One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from\xa0accessible healthcare.\n\nRead the full story here: \xa0http://wildernessmedicinemagazine.com/article.asp?id=1026', u'entity_id': 734, u'annotation_id': 12047, u'tag_id': 1996, u'entity_type': u'post'}, {u'quote': u"and, of course, the community clinic model is unique to acupuncture because you can't treat multiple patients at once with most other modalities!", u'entity_id': 15329, u'annotation_id': 5703, u'tag_id': 1996, u'entity_type': u'comment'}, {u'quote': u"replying to you, @Noemi , I agree it is very valuable for people to have open options for moving on -- from relationships as well as living communities. On the other hand, I value genuine heartfelt commitment, where you commit to staying (unless there is unavoidable danger or intolerable hardship in staying). As we become more economically interdependent (as I think we will be as our current economy unravels) we need to recognise as well that moving out is really hard to arrange sometimes. As it was in the old days for women in marriage. I'm not saying go back there, I am saying let's all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment. I happen to believe that this kind of commitment is also very good in the long term for our spiritual growth.", u'entity_id': 22761, u'annotation_id': 5705, u'tag_id': 360, u'entity_type': u'comment'}, {u'quote': u"It's also made it far easier to get 'buy-in' from the community so that they think of it as something that belongs to them, that they can collaborate with. The terms of interaction defined by our habits of commercial consumption go deep, and having some way to differentiate yourself from it seems very important in encouraging people to thnk and act differently.", u'entity_id': 18202, u'annotation_id': 5704, u'tag_id': 360, u'entity_type': u'comment'}, {u'quote': u'P: What inspired me is community organising. It happens for the sake of community. Same with collaboration.', u'entity_id': 38786, u'annotation_id': 11890, u'tag_id': 361, u'entity_type': u'post'}, {u'quote': u'This is a trying question. In my personal work using participatory methods and facilitation, I\'ve found that audience members generally respond positively to these new formats, perhaps because it is visual and emotion-invoking. When producing the Digital stories and the Events with CCWs, we found people openly reacting to persons they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state "If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn\'t want to be sick like that so he stopped".', u'entity_id': 33824, u'annotation_id': 5722, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'I am wondering if the\xa0community would have gotten better if it was organised by the\xa0groups in question\xa0instead of the municipality.\nWhen talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?)\nBut did it become easier to\xa0learn\xa0a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?', u'entity_id': 10365, u'annotation_id': 5721, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'Definitely! There are several documentary crews coming over to Greece in the last 1.5 years with some really great questions.\nHere is an example:\xa0https://www.youtube.com/watch?v=A0KNbKvYn5w\nAnd here is my documentary "Farming on Crisis?" (2012), which shares the stories of young\xa0people returning to the land, in seek of ways out of unemployment.\nI do believe that in the context of #Brexit, there are several interesting lessons to be learned from the social solutions prototyped by communities in Greece, what I like to call the "Plan C". Producing\xa0a positive, thoughtful documentary film for the transition process happening in Greece is an idea I am very keen in discussing further.', u'entity_id': 11826, u'annotation_id': 5720, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'From a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently\xa0demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.', u'entity_id': 7852, u'annotation_id': 5719, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u"In the network diagrams, nodes are color- and size coded by in-degree. You can think of in-degree as a measure of the interest that the person's contribution elicits in the conversation. By this metric, it is clear that self-selected community members who just jump in\xa0are making a major contribution to the OpenCare research effort. T", u'entity_id': 6175, u'annotation_id': 5718, u'tag_id': 361, u'entity_type': u'post'}, {u'quote': u'The project is driven by the communities in the city. The Trojan Lab started the mapping and year after year new people were interested to help and lead the process, or involve others. The quality check was always done by the organization.\nPieter: \u201cIn terms of social cohesion, it\u2019s crystal clear after 51 Living Street-processes in Ghent, we created a new space at street level that improves relations between residents, between the city government and his residents and we discovered innovative solutions to redesign the street and park the car at a neighborhood parking.', u'entity_id': 33746, u'annotation_id': 5717, u'tag_id': 361, u'entity_type': u'post'}, {u'quote': u'"Within a matter of hours, the team can turn a dusty schoolhouse, or whatever building is available, into an equivalent medical ward where sight-restoring surgery is carried out to comparable standards found in the developed world." (source)\nThis looks like a good fit for community-driven care. You still need ophtalmologists, but the infrastructure around the treatment is minimal and can be conjured by communities. So... is it happening?', u'entity_id': 14907, u'annotation_id': 5716, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'Through collaboration, listening to local caring initatives/groups and providing what we can. I see community and care as part of culture alongside the arts. Examples;', u'entity_id': 14308, u'annotation_id': 5715, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'decentralized, anonimyzed data to advance public health research (blockchain/IPFS).\nOn top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver.', u'entity_id': 735, u'annotation_id': 5714, u'tag_id': 361, u'entity_type': u'post'}, {u'quote': u'We got hold of things like kiwis,\xa0lemons, green salad and baby spinach in too decent shape. Such good food is dumped every single day!\nWe\u2019d love more people to\xa0join, run events or just wave,\xa0from here and from the Internet.\nWe\u2019re thinking of hosting more intimate meals cooked from our own food surplus but for extended friends circles, then gradually expand so the new people coming in at every step are immersed in an already knowledgeable group. I have a hunch this favors deeper learning and behavior change. Another thing we\u2019d like to do is move forward with Yello Fridge (community based, outdoor and public) an idea that only needs a neighborhood space to get started.\nI\u2019d also be curious to hear if you\u2019ve participated in similar food related events. Do you have advice for how to run community dinners regularly and outstandingly?', u'entity_id': 798, u'annotation_id': 5713, u'tag_id': 361, u'entity_type': u'post'}, {u'quote': u"Thank you for compliments, @Noemi! I have something to add to this collection of great ideas and initiatives. In Berlin, there is a group of young Philipino/Brasilian\xa0artists called Nowhere Kitchen who cook with surplus food. But there is so much more to it - they engage the people in chopping and preparing, but they take over the cooking process, so we do not end up with random, kind of awful food. Their recipes were stunning and combinations of tastes surprisingly delicious. The whole evening a guy was jamming to it some ambient/psychedelic stuff on guitar, and when the serving time came, they did a whole spiritual\xa0performance before we started eating. I've been there, and some people from the street came around to join in. It was beautiful! And I think in such a delightful form eating leftovers can be dignified, and very political. (OK, some say the food didn't come out always as great as I remember it -\xa0that's probably the rule of cooking with random leftovers).", u'entity_id': 23981, u'annotation_id': 5712, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u"I'm Sabina, an Environmental Protection master's student from Cluj, Ro, who has attended the event.\nI was honestly very impressed with the event, I congratulate the initiative and the work behind it and even if I was there only to help with the preparing of the food, tasting of the delicious soup and amazing carrot cake, I couldn't help but notice and fully enjoy the community feeling roaming around while slicing potatoes and washing dishes while the food was being prepared by the chefs and volunteers.\nEven though my thesis is precisely on Food Waste, and I've gained knowledge on the issue while researching,\xa0I was so sad to find out about the baby spinach, lemon and other products that were left to rot next to one of the hypermarkets' dumpsters in town.\xa0\n... I can only be happy the Food Waste Combat team came 'to the rescue' and I hope I will be able to attend more of their events (and give a helping hand)\xa0that would slowly bring awareness regarding this burning issue that we only see the smoke of... yet.", u'entity_id': 14250, u'annotation_id': 5711, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 17091, u'annotation_id': 5710, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'\u201cA Resolution\u201d points to the sparks that are creating a new light in the growing darkness: the revolutionary wave that spread from Tunis to New York; the Kurdish freedom struggle and the war against ISIS in Rojava; the riots and blockades sparked by the killings of Mike Brown and Eric Garner; and the retooling and remaking of life with \u201ccivilization starter kits\u201d and \u201cremoving the dust\u201d from indigenous knowledges and practices. \u201cWe, the people who work every day, who think we \u2018don\u2019t have time\u2019 - we are the only ones who can do this,\u201d said a Woodbine co-founder. \u201cNo one\u2019s going to do this for us\u2014no politician, no technological innovation, no international agreement. If we want a different future, we are going to have to make it, from where we are and in every place.\u201d', u'entity_id': 5886, u'annotation_id': 5709, u'tag_id': 361, u'entity_type': u'post'}, {u'quote': u"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?", u'entity_id': 15649, u'annotation_id': 5708, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'That is where the Open Value Network model (OVN) comes in. An OVN is built around a core open source community, preserving its nature, and adds layers of governance, infrastructure and methodologies in order to make large scale, open innovation networks as predictable and accountable as traditional organizations, such as coops or limited liability corporations. In an OVN, contributions to a process, be it tangible items such as time and money or intangibles such as social capital, are recorded and whatever benefit is derived from this process is proportionally divided and distributed back to contributors. This makes open networks sustainable, by allowing the implementation of capturing and redistribution mechanisms. Networks have yet to gain public recognition, legitimacy and legality, but the jury is out already, the OVN model makes open networks fully capable socioeconomic agents.', u'entity_id': 538, u'annotation_id': 5707, u'tag_id': 361, u'entity_type': u'post'}, {u'quote': u"Like other people in the space we are calling open care (small letters: the concept, not the project), you, @steelweaver, are rewiring care services as community-driven. Your way to do so is the donation model. The Helliniko crowd's is the refuse to incorporate.\xa0What different ways have in common is this: they build trust and style these services as community-driven, and the communities as the owners. They also sidestep regulation, perceived as stifling. @teirdes\xa0and @markomanka are full of stories on why this perception is at least partially correct. @Lakomaa could probably offer additional insights.", u'entity_id': 19025, u'annotation_id': 5706, u'tag_id': 361, u'entity_type': u'comment'}, {u'quote': u'Definitely! There are several documentary crews coming over to Greece in the last 1.5 years with some really great questions.\nHere is an example:\xa0https://www.youtube.com/watch?v=A0KNbKvYn5w\nAnd here is my documentary "Farming on Crisis?" (2012), which shares the stories of young\xa0people returning to the land, in seek of ways out of unemployment.\nI do believe that in the context of #Brexit, there are several interesting lessons to be learned from the social solutions prototyped by communities in Greece, what I like to call the "Plan C". Producing\xa0a positive, thoughtful documentary film for the transition process happening in Greece is an idea I am very keen in discussing further.', u'entity_id': 11826, u'annotation_id': 5732, u'tag_id': 1997, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 801, u'annotation_id': 5731, u'tag_id': 1997, u'entity_type': u'post'}, {u'quote': u"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called \u201cReal Food Utopia\u201d as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts).\nThe workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it.\nI am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad.\nI am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.\xa0 I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains.\nWe would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects.\nWe are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an \u201cumbrella\u201d project which consists of several innovative schemes.\nThe main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece\u2019s rural areas and promote an economy that is based on social solidarity and alternative currencies.\nWhat we have in mind is summarized in the following fields of action:\n\n\nExporting network of agricultural products in Northern Europe (especially citrus, olive oil and \u201cugly\u201d fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices.\n \n\nPromotion of food security and food sovereignty in Greece.\n \n\nRespond to the mainstream challenges by using our ingenuity and creativity for social \u2013nonpersonal- benefits.\n \n\nReduce food waste promoting \u201cugly\u201d fruits and vegetables focusing on good quality.\n \n\nBoost local economies and offer technical support to Community Supported Agriculture schemes.\n \n\nCreation of an official Greek hub for non formal groups working on food sovereignty that lack financial support.\n \n\nSaving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership.\n \nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group.", u'entity_id': 750, u'annotation_id': 5730, u'tag_id': 1997, u'entity_type': u'post'}, {u'quote': u'The Foodsharing idea (https://project.yunity.org/about_foodsharing in English) just makes so much sense.\xa0\n\nI am not completely sure we can classify it as "care", though. But perhaps it\'s not even \xa0that important.\xa0\n\n@Paul_Free, I know there are plans of community (vegetable)\xa0gardening as part of the city of Galway\'s bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?', u'entity_id': 9428, u'annotation_id': 12050, u'tag_id': 1998, u'entity_type': u'comment'}, {u'quote': u'Thank you for your comments.\n\nOur garden is theoretically for children, then for their families. Which means that...\n\nThe outstanding feature of our experience is the fact that we are not an intellectual or "political" movement, but the ordinary people of this district: a cross-section of families of both traditional and immigrant background, who take their children to the garden (basically a playground with trees). Everybody except the very, very rich.\n\nHowever, we opened this garden in a situation of conflict, an object lesson for everybody on gentrification and the ruthlessness of real estate speculation: we did not put the politics into it, they did, and everybody has learned the lesson.\n\nCommunities can be built on imagining the past, children help us to imagine the future together and learn to build solidarity - we love our place and its history, but anybody from\xa0Senegal or from\xa0Germany who also loves them is welcome;\xa0\n\nIn this context, we do small things with major implications, for example:\n\n- markets where parents give and take children\'s clothes for free, which teaches one enormously important things about the wastefulness of our society;\n\n\nviolin lessons, chess\xa0and opera singing because we believe that "beautiful","elegant" and "difficult" things should not be the monopoly of a financial elite;\nthe only free football school in Florence, thanks to the unique Lebowski football team;\nattempting to revive the dying crafts of Florence and discover the history of our district, with all its tremendous historical implications;\nwe are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market;\nwe are beginning to develop more sustainable ways of consumption, in a gradual way that everybody can understand, also thanks to the fact that we have a child\'s birthday party nearly every day in our garden! And a child\'s birthday party is a much better place to deal with these issues, than a smoke-filled meeting hall...\n\n\nWhatever we do, we try to move together with as many other organisations as possible in our district - ranging from the parish church to the young people occupying an abandoned house, to small shopkeepers, to the very, very\xa0special Florentine institution of "Calcio Storico".\n\nWe also want to provide the lowest level of basic services, which the "state" is dropping out of, and this is where the issue of health and other care interests us.\n\nThe institutions first saw us as a harmless group of parents who wanted a place for their children to play,\n\nthen more or less as enemies,\n\nthen as a large group\xa0of voters who need to be humoured, as well as people who do for free what the state usually has to pay for.\n\nWhich is alright, we\xa0neither hate nor love the dying institutions of our times.\n\nWe love our people, our monuments, our trees, our bats and cats that come at night, and\xa0anybody else in the world who feels like us and realizes that this world should not belong to speculating private monsters or to cold public machines.', u'entity_id': 21382, u'annotation_id': 12051, u'tag_id': 1998, u'entity_type': u'comment'}, {u'quote': u'Designer nurse and community growing, a BA in business enterprise and community development, volunteers in a school garden. Outdoor classrooms. Making rural areas more part of the community. Coliving, co working and retreat, mixing mental health, art therapy, yoga/movement and ecology. Beginning to step into Open Source. In last weeks they did a project where they went to visit Cregg Castle (unused): framed as unMonastery, a co-living and coworking retreat over a short period, through the European Capital of Culture 2020 which Galway won.\xa0\u201cMy problem is I do too many things\u201d At #OpenVillage he doesn\u2019t know what he is able to host, as he\u2019s just out of running an event locally. Most relevant is unMonastery.', u'entity_id': 6360, u'annotation_id': 5737, u'tag_id': 1998, u'entity_type': u'post'}, {u'quote': u'I volunteer at a community/school garden (Soil Chro\xed \xcdosa) with Transition Galway and was a writer/editor and designer for our \u201cA Vision for Galway 2030\u201d document.', u'entity_id': 812, u'annotation_id': 5736, u'tag_id': 1998, u'entity_type': u'post'}, {u'quote': u"I like\xa0your description of your\xa0community garden\xa0becoming\xa0a 'laboratory for resilient forms of urban development'. If we're truly open to learning - the most surprising spaces can become laboratories for new methods and models.\xa0And I totally get what you say about how unhelpful the pressure to present to the external world the successes is, in sharing and learning from the excessive challenges that community work can present.", u'entity_id': 23537, u'annotation_id': 5735, u'tag_id': 1998, u'entity_type': u'comment'}, {u'quote': u'The Prinzessinnengarten is a communal project; our vegetable beds are shared without anyone claiming individual ownership. Over the course of four years, supporters from the local community have dirtied their hands in order to. This takes place in a neighborhood that is one of the most densely developed and socially most vulnerable in the city. Here a garden evolved that can sustain itself financially and that grew into a locus of social exchange and mutual learning.', u'entity_id': 507, u'annotation_id': 5734, u'tag_id': 1998, u'entity_type': u'post'}, {u'quote': u"there is a community garden\xa0called Himmelbeet in Wedding that might be an interesting project for you to check out! Volunteers can just come\xa0in during the opening hours and just see what kind of work there is to do - usually always something, from gardening to building stuff to preparing workshops. They have alot of projets going on and would be more than happy to talk to you,\xa0I am sure.\xa0I believe that some refugees work there too, or would be very welcome at least!\xa0\nActually, I just started\xa0volunteering there some weeks ago. For their Spring Opening Fest, I helped set up and supervise a little stall for people to make Stockbrot. At first, it was us preparing the bread for the guests and then they would cook it over the fire. However,\xa0some of the refugees that were there were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily\xa0and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough.\xa0Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped\xa0you a little!", u'entity_id': 26945, u'annotation_id': 5733, u'tag_id': 1998, u'entity_type': u'comment'}, {u'quote': u'Medic believes that health is a human right. We know that global health disparities around the world are vast, and it\u2019s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact.', u'entity_id': 564, u'annotation_id': 5738, u'tag_id': 364, u'entity_type': u'post'}, {u'quote': u'Simon from England - be useful to try to get his engagement. Lancaster co-housing. Not working. But builds in lots of protection for you. Sliding scale - when you live with people, how much are you keeping for yourself. It really comes into play when you have kids. That\u2019s when it gets interesting. The parenting dynamic can become tense. It\u2019s always a conversation between the individual and the collective. It might be interesting to hear more about how they\u2019ve doing.', u'entity_id': 6415, u'annotation_id': 5856, u'tag_id': 378, u'entity_type': u'post'}, {u'quote': u'I love this quote too;\xa0"Instead,\xa0being\xa0is an act or event that must happen in the space between the self and the world."\nWe hear a lot in our line of work - this guy has low self esteem - or this woman lacks self confidence. I now see from reading the article you sent that this is itself based on Cartesian thinking. And\xa0I think it goes way beyond loss of self esteem etc\xa0- I think\xa0we\'ve been observing the people arriving at our door with profound loss of all\xa0sense of self. The article you sent helps to describe why that might be. Sense of self is coproduced in forming a sense of collective.', u'entity_id': 27228, u'annotation_id': 5855, u'tag_id': 378, u'entity_type': u'comment'}, {u'quote': u'Great, great story.\nIt is however reported as a solo heroic strive rather than as a community effort. The article does mention the "biotech hacker space Counter Culture Labs", and then the Open Insulin project, but makes it sound as if the individual initiative were what mattered in solving the situation.\nI would be interested to know more about the story, and learn about the collective effort that was put in. (Although it could well have been the result of individual effort after all.)\nOn "where to put this stuff", I suppose we should start archiving these stories somehow. My guess is a wiki would do it ok (but I understand ER wikis have been used as single page wikis most of the time). A (collection of) hackpad (or anything similar)\xa0would probably be fine.', u'entity_id': 6667, u'annotation_id': 5854, u'tag_id': 378, u'entity_type': u'comment'}, {u'quote': u'I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the "professional care & aid circus" can dock into, and many of the respective group\'s fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.', u'entity_id': 13504, u'annotation_id': 5853, u'tag_id': 378, u'entity_type': u'comment'}, {u'quote': u'ut my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!', u'entity_id': 30608, u'annotation_id': 5852, u'tag_id': 378, u'entity_type': u'comment'}, {u'quote': u'Going from the personal and going global to create\xa0\n\n\n\n Common ground (everywhere)\n\n\n\n\n Connection \u2192 Empathy', u'entity_id': 5405, u'annotation_id': 5848, u'tag_id': 378, u'entity_type': u'post'}, {u'quote': u'What if we could come up with a system that combines the access to modern science and technology of state- and private sector-provided care to the low overhead and human touch of community-provided care?', u'entity_id': 5510, u'annotation_id': 5847, u'tag_id': 378, u'entity_type': u'post'}, {u'quote': u't LOTE4 and LOTE5 we used the concept of "community journalists", semi-organized note-takers. It worked like this:\n\nPeople volunteered for the Documentation Team (LOTEs are "no spectators event", you have to volunteer for something to get a ticket).\xa0\nA team leader would set up Hackpads or other repositories for notes. Important: these need to support real-time collaborative editing, so a wiki like you have on wikimedia or edgeryders will not work.\nThe team would have its own briefing on the morning of the first day. People would sign up for the different sessions, trying to cover them all. They would also receive some format indications. A format I personally used is attributed first person quotes. Example:\n\nBEN \u2013 I went through a serious burnout period two years ago. Something that seemed to help was temporarily deactivate my Facebook account, because it took away the anxiety from being constantly poked and drawn back to interacting with others. \xa0\n\nIn session, everyone would be encouraged to help with note-taking, but the documentation ream members took the lead. That made it easy for people less confident with note-taking to chip in maybe just a little, adding some points here and there or even just correcting typos.\nAfter the session, everyone was encouraged to go to the hackpad and make corrections as needed. If my point of view was misrepresented, I could correct for it. If you don\'t correct, it means you are OK with it ("open").\n\nI imagine a documentation team could be guided to produce notes that make more sense from an ethnographer\'s point of view.\xa0\nNotice that this is NOT storytelling, nor journalisme flaneur... though those are valuable too. First person narrative are preserved, at least when the community journalist do their\xa0job well.', u'entity_id': 10953, u'annotation_id': 5739, u'tag_id': 365, u'entity_type': u'comment'}, {u'quote': u'Kitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like\xa0electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their "guests" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.\xa0\n\n@Alex_Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !', u'entity_id': 16177, u'annotation_id': 12068, u'tag_id': 1999, u'entity_type': u'comment'}, {u'quote': u'An example of community project I recently took part in - along similar reasoning, is a community food waste dinner:\xa0takes a resource many people have: food leftovers - and use it to cook new dinners for others who could learn and do the same. Not poor people, but people who can then go home and reuse their waste in some positive way instead of throwing it to the garbage. Pay it forward, indeed.', u'entity_id': 9905, u'annotation_id': 5746, u'tag_id': 1999, u'entity_type': u'comment'}, {u'quote': u'Just stumbled upon this\xa0social enterprise creating community and business\xa0opportunities for migrant women chefs - especially through popup kitchens.\nMazi Mas means "with us" in Greek. "In the kitchen we speak the same language" they say.. A beautiful presentation video is here:\xa0http://www.mazimas.co.uk/our-story/', u'entity_id': 12481, u'annotation_id': 5745, u'tag_id': 1999, u'entity_type': u'comment'}, {u'quote': u"Thanks for sharing this with us @Luisa.\xa0\nI was convinced of this approach ever since I heard Jeff, a community member in Athens telling us about Senait's Kitchen to actually provide employment for migrants - a little like a company shell. In\xa0a year they've gone through several iterations, bringing new migrants in the group of cooks, have catered to hundreds and are on their way of building a cooperative. Check out\xa0Options Foodlab:\xa0http://options.limited/about-options/", u'entity_id': 9429, u'annotation_id': 5744, u'tag_id': 1999, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 695, u'annotation_id': 5743, u'tag_id': 1999, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 5742, u'tag_id': 1999, u'entity_type': u'post'}, {u'quote': u'We got hold of things like kiwis,\xa0lemons, green salad and baby spinach in too decent shape. Such good food is dumped every single day!\nWe\u2019d love more people to\xa0join, run events or just wave,\xa0from here and from the Internet.\nWe\u2019re thinking of hosting more intimate meals cooked from our own food surplus but for extended friends circles, then gradually expand so the new people coming in at every step are immersed in an already knowledgeable group. I have a hunch this favors deeper learning and behavior change. Another thing we\u2019d like to do is move forward with Yello Fridge (community based, outdoor and public) an idea that only needs a neighborhood space to get started.\nI\u2019d also be curious to hear if you\u2019ve participated in similar food related events. Do you have advice for how to run community dinners regularly and outstandingly?', u'entity_id': 798, u'annotation_id': 5741, u'tag_id': 1999, u'entity_type': u'post'}, {u'quote': u'The way I understand it, managing real estate in an overheated real estate market like the UK\'s\xa0makes more money than producing care services. Hence the tension of these hedge funds that, as a result of being bottom-line oriented, focus on the buildings and not on the people.\xa0\nThe separation of assets from activities makes a ton of sense. I looked up community land trusts on Wikipedia (https://en.wikipedia.org/wiki/Community_land_trust), and I think I now understand how that might work. It seems to me there is an "upstream" problem: finding the money to take a valuable piece of real estate off the market forever, damn the capital gain. I don\'t see how this can be completely solved. The advantage of the CLT model is that you only have to do that ONCE. Once you have done it, the land is secure (except if the CLT goes bust, but I imagine CLTs are supposed to be very risk-averse). Am I getting this right?\nCLTs might be of interest to @Nadia in view of The Reef.', u'entity_id': 17506, u'annotation_id': 5748, u'tag_id': 367, u'entity_type': u'comment'}, {u'quote': u'We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority.\nIn care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human "resources" and patients as "consumers" of health care services, squeezing the system to extract wealth.\nThis is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having "owners" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to "delivery of health services", which is quite a different thing.\nA useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn\'t otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure.\nTo put it another way, using financial language, owning land has a different time horizon and a different risk profile\xa0 from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That\'s the theory anyhow.', u'entity_id': 15711, u'annotation_id': 5747, u'tag_id': 367, u'entity_type': u'comment'}, {u'quote': u'C\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.', u'entity_id': 672, u'annotation_id': 5749, u'tag_id': 368, u'entity_type': u'post'}, {u'quote': u'Hey @NADIA\xa0@GEHAN and @NOEMI,\xa0\n\nIn my experience it these circles work very well when the group shares a common willingness to receive, listen, and is open to go into deep experiences. Also what works well is to set a clear invitation and some simple guidelines, such as the ones I described. They help the group process and give a certain structure to build up momentum.\xa0My experiences have been diverse. I\'ve experienced beautiful gatherings where love, depth and understanding were shared among all participants. Sometimes when the group was mixed deeply sharing also lead to some confusion as these depths were not familiar to everyone and not everyone seemed to grasp the depth of the experience of someone else. Although I think it didn\'t harm or shock anyone too much, I do think it may have lead to some confusion. For instance, I once went very deep receiving the talking stick and staying silent for a few minutes, all attention on me, I didn\'t want to "just say something" so I stayed present with my inner dynamics (and doubts) in front of everyone. Finally, I said something that felt true to me. So I remained connected to my inner truth. The woman who was sitting next to me didn\'t know how quick she had to say something when I gave her the talking stick. Ever since our contact between me and the woman have been somewhat weird. Coming to think of it, I should have probably talked to her sometime and exchange perspectives lightly....  (oops).\xa0\n\nThis particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I\'d say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.\xa0\n\nI believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what\'s alive in you at the moment. This worked pretty well.\xa0\n\nI also initiated a circle once during a workshop where people didn\'t really know each other and there wasn\'t a real theme or topic. In that setting it didn\'t feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there\'s always (some) interest), \xa0there wasn\'t really a common intention or relevance to have this talk together. So I wouldn\'t organize a circle "out of the blue" again.\xa0\n\nMost of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it\'s no problem and good examples will follow.\xa0\n\nMost circles I went to lasted for about 1 to 2 hours. Although probably you know about retreats/ satsangs for instance with Bentinho Massaro that take about the whole day (with sessions of about 1,5 to 2 hours each). Have to say that during these days Bentinho (or some other "teacher) is the one who does most of the talking. Yet, he knows how to bring a group into depth. So, even though it\'s a different form, there\'s also huge transformation happening during these meetings.\xa0\n\n@Nadia about organizing this at The Reef. I would say a circle is very appropriate and effective if there is a theme or topic that has great interest. When this is the case, we can do it. You could also guide it yourself if you feel excited.\xa0\n\nAnd is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.\xa0\n\nSo let me summarize my experiences:\xa0\xa0\n\n\nSharing from personal experiences - yet not getting caught up into the story. The aim is to gain clarity to let go of stories and have space te create the new.\xa0\nCircles work well around certain (loaded) theme\'s and communities who work/ life together with a clear invitation.\xa0\nListening from the heart, listening from beyond the personal perspective (not taking anything personal)\nEverything that pops up from a genuine sharing is welcome, even if it\'s off topic. What\'s alive here and now is relevant, provided it serves the conversation & transformation of the whole (including the individual).', u'entity_id': 24534, u'annotation_id': 12078, u'tag_id': 2000, u'entity_type': u'comment'}, {u'quote': u"a good host and facilitator who's comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.", u'entity_id': 6401, u'annotation_id': 12077, u'tag_id': 2000, u'entity_type': u'post'}, {u'quote': u'How to put everyone together productively without eg. 2 people having to work full time? Two aspects: community management and information sharing.', u'entity_id': 6459, u'annotation_id': 5754, u'tag_id': 2000, u'entity_type': u'post'}, {u'quote': u'together; shared community tasks; and organisation and governance by consensus. It\'s quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That\'s partly due to economic factors.\nIt is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I\'d like to focus just on one of the challenges that I see here: how we engage with our own and each other\'s well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally.\nSharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.\nWe do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?\nThis brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on?\nThese are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other\'s resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.', u'entity_id': 830, u'annotation_id': 5753, u'tag_id': 2000, u'entity_type': u'post'}, {u'quote': u'But disagreements happen. \xa0Things go unsaid and build up. \xa0So what then?', u'entity_id': 15392, u'annotation_id': 5752, u'tag_id': 2000, u'entity_type': u'comment'}, {u'quote': u'No, other\xa0examples of care services that rewire themselves so as to (1) establish themselves as "owned" by the community and (2) bypass stifling regulation.', u'entity_id': 22025, u'annotation_id': 5756, u'tag_id': 370, u'entity_type': u'comment'}, {u'quote': u"Like other people in the space we are calling open care (small letters: the concept, not the project), you, @steelweaver, are rewiring care services as community-driven. Your way to do so is the donation model. The Helliniko crowd's is the refuse to incorporate.\xa0What different ways have in common is this: they build trust and style these services as community-driven, and the communities as the owners. They also sidestep regulation, perceived as stifling. @teirdes\xa0and @markomanka are full of stories on why this perception is at least partially correct. @Lakomaa could probably offer additional insights.", u'entity_id': 19025, u'annotation_id': 5755, u'tag_id': 370, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 5759, u'tag_id': 371, u'entity_type': u'comment'}, {u'quote': u'In cooperation with local institutions, with universities and international partners, the Prinzessinnengarten became a laboratory for resilient forms of urban development. In a pragmatic manner, we have been asking questions on how to deal with urgent issues such as climate change, dwindling resources, food sovereignty and the loss of biodiversity. The answers being experienced and experimented on all strive toward the creation of a resilient city, not only taking global challenges such as climate change into consideration\xa0but also incorporating local actors in the building of practical and local solutions.', u'entity_id': 507, u'annotation_id': 5764, u'tag_id': 372, u'entity_type': u'post'}, {u'quote': u"@Bernard I am looking at the Transition Galway website:\nSince October 2012 we have been working on the Transition Galway community garden [...]\xa0\xa0It\u2019s a nice wee plot, kindly offered by the school to our group. Together with the pupils, parents, teachers and members of the community we have been growing food and improving biodiversity.\nA TG-school collaboration around gardening, biodiversity and community building that's been going onto five years. That's impressive. This is how you build a culture of teamwork and societal resilience. If you guys can start a community garden and keep at it for five years, you can probably get ambitious. Where do you think the stamina come from?", u'entity_id': 19534, u'annotation_id': 5763, u'tag_id': 372, u'entity_type': u'comment'}, {u'quote': u'This is incredible work - through these interventions TICAH help communicate that the process of recovery is not the problem of the victim of torture alone, but is in a very real sense owned by the whole community. One striking aspect is the emphasis on accepting the seriousness of the situation - dealing with the very worst of what humans can do to each other - with vital, dramatic, expressive interactive meetings. The labyrinth walking is profoundly beautiful group ritual and the body mapping opens up the assembled individuals to listen to the challenges that others have lived through, and it does this in a joyful and creative way. Reconciliation over food feels innately right. The activities though almost timeless in their simplicity are unusual and unexpected, and generally unlike anything that any of the participants have done before. The act of doing something new is particularly suited to transforming problems as there are no painful memories attached; it opens up new horizons and is perhaps more likely to lead to a renewed present.', u'entity_id': 553, u'annotation_id': 5762, u'tag_id': 372, u'entity_type': u'post'}, {u'quote': u'Volunteers playing with children; refugees and security joking around and everybody is eating at the same table. There is no hint of the provider/receiver-dilemma that you would witness in other establishments.\xa0We\u2019ve been warmly welcomed by the people and the relationships have gradually grown more personal since our first visit.', u'entity_id': 703, u'annotation_id': 5765, u'tag_id': 373, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 5860, u'tag_id': 380, u'entity_type': u'post'}, {u'quote': u'Next, compassion. \xa0People who live together, and don\'t want to be a bunch of robots, need to find ways of being ok with each other\'s ways of being. As it said in a recent artticle about why Findhorn has lasted so long one guy said, "everyone is willing to look at their stuff."', u'entity_id': 15392, u'annotation_id': 5859, u'tag_id': 380, u'entity_type': u'comment'}, {u'quote': u'How can we find the right balance between keeping the effectiveness of the box with still being able to go out of the box/', u'entity_id': 541, u'annotation_id': 12084, u'tag_id': 2002, u'entity_type': u'post'}, {u'quote': u'The skills, awarenesses, competences, knowledge and practices of individuals;', u'entity_id': 6462, u'annotation_id': 5870, u'tag_id': 2002, u'entity_type': u'post'}, {u'quote': u"I'd love to discuss those things with someone who has a little more care background than I do (materials science).", u'entity_id': 9902, u'annotation_id': 5869, u'tag_id': 2002, u'entity_type': u'comment'}, {u'quote': u'What have we learned about having citizens define and help advance our research project?\nOur team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn\xa0and contribute. The sharing of knowledge and responsibilities\xa0within our group thus mirrored what we were seeking to support beyond the group.', u'entity_id': 859, u'annotation_id': 5868, u'tag_id': 2002, u'entity_type': u'post'}, {u'quote': u"I love this. Shifting the viewpoint to highlight the beauty and variety of people's different abilities. It really does seem like a win-win idea. Your photo here looks so modern and stylish, but when I go to your website it falls a little bit flat in interesting content. The concept though is so beautiful.\nI am a graphic designer, I can imagine a really beautiful brand overhaul to reflect this innovative project and an open source toolkit made for people/social entrepreneurs/investors\xa0who would like to implement discovering hands.", u'entity_id': 14838, u'annotation_id': 5867, u'tag_id': 2002, u'entity_type': u'comment'}, {u'quote': u"Finding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow.", u'entity_id': 788, u'annotation_id': 5866, u'tag_id': 2002, u'entity_type': u'post'}, {u'quote': u"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory,\xa0collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.", u'entity_id': 33730, u'annotation_id': 5865, u'tag_id': 2002, u'entity_type': u'post'}, {u'quote': u"think that i'm lucky that i have a mixture of practical\xa0and esoteric skills that allow me to find a happy place doing a variety of tasks. I often find that the more 'mindless' a physical task is the more it opens my mind up to thinking about the bigger picture.\nThat said, i have found that i only really excel when i'm allowed to focus on one area at a time. If i need to be a doer, then i can't also be a prepper. The same with preparing and leading;\xa0Leading and thinking.\nI do also think that 'thinking' and 'leading' are mutually exclusive properties. I believe that leaders emerge naturally from each section or strata. You see this kind of strategic leadership built into highly heirarchical organisations like the armed forces. You have 'doer' leaders and 'prepper' leaders and 'thinker' leaders.", u'entity_id': 24272, u'annotation_id': 5864, u'tag_id': 2002, u'entity_type': u'comment'}, {u'quote': u"Here it is: there is a positive correlation between being good at different things, like thinking, prepping and executing in your scheme. Smart, hard working people tend to be better on all three (or n-) dimensions with respect to others. So, I very much share @Noemi 's point of view: when we meet an interesting person, we try to imagine a role for her, then try to create the conditions for us to be able to offer her that role. But, at the same time, the role is embedded in the\xa0project,\xa0not in the organisation. People can try their hand at roles, then maybe move on to different ones in the next project.", u'entity_id': 20914, u'annotation_id': 5863, u'tag_id': 2002, u'entity_type': u'comment'}, {u'quote': u'A\xa0final point: a flat organisation has leaders of its own, even informal\xa0- I can\'t imagine not having leaders, even multiple ones,\xa0giving direction to the org.\xa0Don\'t you have them in your large group Yannick?\xa0Falkwinge,\xa0who wrote about making great ideas happen with many people contributing, was saying that managing\xa0day to day operations require\xa0"one portion classic\xa0project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm\u2019s goals, culture, and values as it grows." OK, his Pirate Party\xa0was\xa0a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills\xa0distrbuted within the leadership may help the general organisation and support others to fall into specific roles..', u'entity_id': 15147, u'annotation_id': 5862, u'tag_id': 2002, u'entity_type': u'comment'}, {u'quote': u'Unless you are a superhuman that can do everything alone, in an organization it is rather intelligent to search for each other complementary skills. A thinker with a lot of energy to give to do will need a preparation master as his right hand. How bigger the group how more difficult it is to find a balance, but have five thinkers and one prepper you will never get the job done.', u'entity_id': 785, u'annotation_id': 5861, u'tag_id': 2002, u'entity_type': u'post'}, {u'quote': u'The issue is complicated and multifaceted, I would immediately give up any attempt at labelling the barriers as "ethical", "protectionism", or anything else... there are components of each of the above and more, and the problem is intractable if reduced.', u'entity_id': 38810, u'annotation_id': 11836, u'tag_id': 382, u'entity_type': u'comment'}, {u'quote': u"Great summary @Gehan of the work so far in all its human complexity: I'm often reminded of the phrase of encouragement used in 12-step addiction fellowships: 'progress, not perfection'.", u'entity_id': 16896, u'annotation_id': 5872, u'tag_id': 382, u'entity_type': u'comment'}, {u'quote': u'My early encounters with the Edgreryders platform, I\u2019ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it\u2019s at odds with standard linear project trajectories and ways of working. So perhaps I\u2019m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.', u'entity_id': 6462, u'annotation_id': 5871, u'tag_id': 382, u'entity_type': u'post'}, {u'quote': u'Hello everyone\n\nI am a full-time community mental health nurse based in Ormskirk Lancashire. Since 1998 online Have championed a conceptual framework - Hodges\' model which was created to facilitate person-centered, holistic, integrated care and reflective practice. Currently I am researching the model at Lancaster University in Technology Enhanced Learning. My Part 2 project involves evaluating the model by creating a new web resource to prototype specific content types, gather data and create some research interest.\xa0I plan to use Drupal to create my research platform.\n\nI have just posted news of OP3N on my blog "Welcome to the QUAD"\n\nhttp://hodges-model.blogspot.co.uk/\n\nwhich also lists a bibliography:\n\nJones, P. (2004)\xa0The Four Care Domains: Situations Worthy of Research. Conference: Building & Bridging Community Networks: Knowledge, Innovation & Diversity through Communication, Brighton, UK.\n\nJones, P. (2008)\xa0Exploring Serres\u2019 Atlas, Hodges\u2019 Knowledge Domains and the Fusion of Informatics and Cultural Horizons, IN Kidd, T., Chen, I. (Eds.) Social Information Technology Connecting Society and Cultural Issues, Idea Group Publishing, Inc. Chap. 7, pp. 96-109.\n\nJones, P. (2009) Socio-Technical Structures, the Scope of Informatics and Hodges\u2019 model, IN, Staudinger, R., Ostermann, H., Bettina Staudinger, B. (Eds.),\xa0Handbook of Research in Nursing Informatics and Socio-Technical Structures, Idea Group Publishing, Inc. Chap. 11, pp. 160-174.< br /> Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination.\xa0International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311.\n\nYou\xa0may find this model relevant to your respective projects, if so please get in touch...\n\nIf you have any key papers, reports or conferences I\'d be delighted to hear of your news.\n\nBest wishes in your work.\n\nPeter Jones Community Mental Health Nurse CMHT Brookside Aughton Street Ormskirk L39 3BH, UK\n\n& Graduate Student - Lancaster University: Technology Enhanced Learning Blogging at "Welcome to the QUAD" http://hodges-model.blogspot.com/ http://twitter.com/h2cm', u'entity_id': 676, u'annotation_id': 12087, u'tag_id': 389, u'entity_type': u'post'}, {u'quote': u'Hallo Peter!\nThis looks very much like a care model relatet to integral aspects as in "Integral Theory". For insiders there ist not much to mention... you are on the right pass, following the right train of thougt.\nWe do have a simolar model in Mind but not only focussing on health, rather integrating health, learning, knowlege and cohabitation into a larger scheme.\nSo we want to encourage you to not only reserach this and create a virtual environment but work with real communities, who get supported by your ideas.\nBert', u'entity_id': 15679, u'annotation_id': 5942, u'tag_id': 389, u'entity_type': u'comment'}, {u'quote': u"Thank you @Alex Levene!\n\nThank you @Alex_Levene! Though it's temporary ceasefire, Azeris still shoot but not as much as before, now we need to wait and see...apparently there are 2 solutions out of this: full blown war or back to frozen conflict. The thing is Armenians are united against a common enemy and ready to protect their land while for Azeris this is a matter of principle - after all NKR has been a part of Azerbaijan during USSR, so they can't accept to lose it. Apparently no way to solve this conflict in a diplomatic way...maybe in a 100 years, when the rulers change and the new open-minded generation comes to power.", u'entity_id': 33780, u'annotation_id': 12088, u'tag_id': 390, u'entity_type': u'comment'}, {u'quote': u"It is my pleasure to introduce myself. Unique experiment of nature, kind, sweet, cheerful, positive, charismatic, did I mention good looking? I have a couple of certificates\u2026\u2026and so on\u2026 curious and creative, eager to learn, to travel, have fun\u2026\n\n\xa0 I live in Serbia, the Balkans, reason enough to be interested in current events in the world and region. Turbulent past, dynamic present and an uncertain future, burdensome by intolerance and conflicts in the region, which I personally found not only unnecessary but also totally crazy, because we all have the same desires and dreams, to live freely, love unconditionally, have fun, learn, be independent, travel, have amazing adventures, the best parties \u2026. without regard to national and religious affiliation, skin color, eye color\u2026 there are too many prejudice, inequality, unprotected and vulnerable people, there is gender inequality, intolerance, social injustice, poverty, hunger, disease, non-existent or inadequate health care, problems of refugees, racism\u2026. I do not know why and I`m trying to understand. Injustice affects me terribly. We learn history in order to avoid the mistakes which were made and were pretty catastrophic, and to me it seems like we constantly repeat the same errors. I have learned not to judge in advance, that all deserve respect, a smile, a kind word, that the mind is like a parachute works only if it is open, that in the period of globalization, IT progress, revolutionary discoveries, scientific achievements, robotics, nanotechnology \u2026 we must not think about limits, all barriers and borders exists\xa0 only in our heads., I perfectly understand what it means conflict, and detest it, I hate arguing, hate conflicts. I watch the news, read a newspaper and follow social networks and\xa0 I can say there is too much violence, too much suffering, too much of everything negative, the constant threat of war, terrorism\u2026just too much. I want a better world, a better society, a better life for all, it is important to take care of others, to be open-minded. I want more, I need more, no one should be afraid for ones lives, children must not be hungry, barefoot, on the streets, women must not be abused, people should not be expelled from their homes, the world gone crazy and we desperately need all people of good will who want and have the knowledge and strength to fight, not only to philosophize and criticize, but also commit to work, to improve our society, day after day, devotedly\u2026\n\nThey tell us that as individuals we cant do anything, at least anything important, that we are still small, young and inexperienced, but adults forget, and sometimes reduces our value, ignored it, forget it under the weight of today circumstances. We are thirsty for knowledge and education, we might be weak, but snowflakes are gentle and weak until they connect, then they become strong. We need to connect, as snowflakes, the youth of the region and the world, only united we can be strong, important, perhaps adults hear us and listen. When children quarrel, they quickly reconcile because its not important to be right, but to be happy. We should accept that we do not have to agree on everything, sometimes can agree to disagree, but we have to respects others' way of life, other people's opinion, that we can discuss about everything, not argue, talking in order to generate ideas, information, positive energy.. To find the solution for all problems and dilemmas, make projects, succeed.\n\nSomehow it feels despair and uncertainty it should not be so, we are young, we have desire and we can change everything that we do not like.\n\nIt is essential to connect, and I read that nothing brings people together as well as living a happy accident, if it is true, We, all\xa0 in this region, the Balkans, we have more opportunities to be close, strong and organized than anyone else in the world, everything we've been through good and bad, sometimes on opposite sides, unfortunately, but we survived, war and killing, and we must never repeat it, we also\xa0 sang and celebrated and rejoice together, it was perhaps more sadness and unhappiness, but if there is justice in life, in future we should have only lucky days, happiness. Good neighborly relations like friendship and trust builds, slowly and gradually, all that is good and valuable in life, takes time. First we need to forgive. Forgiveness is possible only with understanding, that is why this camp is super idea, to understand together what had happened, impartial, draw lessons from history, in order to continue, this time better, smarter.\n\nThe goal is to make the world a better and more humane place, sustainable, use space in the best possible way, with full respect of nature and population needs, because that's the point of studying, find the best way to reconcile nature and society to meet human needs, give vision of the future, the objectives of the future development.\n\nEverything is connected and the problems must be considered as a system, If one part of the system does not work properly, it reflects on other parts of the system.", u'entity_id': 854, u'annotation_id': 12090, u'tag_id': 390, u'entity_type': u'post'}, {u'quote': u'In March the French prefecture with the support of the CRS cleared the oldest, largest section of the camp in the south.', u'entity_id': 39328, u'annotation_id': 11639, u'tag_id': 390, u'entity_type': u'post'}, {u'quote': u'One thing I do know about why one should not avoid conflict if something needs to be talked over, is that relationships with any history of resolving conflict are stronger because built into the bond is the\xa0knowledge that\xa0you can resolve something because you actually did it.', u'entity_id': 15392, u'annotation_id': 5948, u'tag_id': 390, u'entity_type': u'comment'}, {u'quote': u'Answering that question requires examining the roots of the conflict, the context in which it arose, and the factors that have kept it going. This study offers some frank evaluations of the efforts made over the years to resolve the conflict, some of which have not been discussed publicly except in the partisan narratives of one side or the other.', u'entity_id': 33808, u'annotation_id': 5947, u'tag_id': 390, u'entity_type': u'comment'}, {u'quote': u'War is like a dirty toilet that no one wants to clean someone said...\nViolence begets violence and war is the\xa0ugliest\xa0human invention. For the past \xa04 days\xa0our lives here in Armenia have turned upside down...Things are calm in Yerevan but the situation in Nagorno-Karabakh is on everyone\'s mind. Most people know at least someone who is on the front lines, mostly 18-20 year old boys serving their mandatory 2 year service,\xa0\xa0though\xa0hundreds of volunteers and\xa0army reserve forces are joining.\nIt\u2019s hard to shift my mind\xa0and concentrate on\xa0work at all in this situation...I\'ve been idly browsing and refreshing the news\xa0(local - only official info that is of course censored, intl - absence of reaction and investigative journalism, and azeri- misleading statements and false accusations)\xa0since Saturday morning when the shootings began.\nEven though me and most of the people I know haven\'t really grasped the reality in this information blockade, this is war...this is what war looks\xa0like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it\xa0started...\nFirst thing on my mind -\xa0I do not want my daugher to witness the horror we\'ve been through...second thought -\xa0Armenian\xa0and Azeri people\xa0should gather at the\xa0border in masses and have\xa0free hugs...third thought - war is inevitable, this is the reality, people too brainwashed by their governments, full of false patriotism, nationalism and machism...peacemaking failed once again...\nWe dance and send our\xa0children to fight the enemy,\xa0this is the only way...both sides consider each other agressors and feel the necessity to protect themselves/reclaim their lands....false declarations of ceasefires, provocative war crimes, rejoicing in\xa0the losses of "the enemy" just like in a football match\xa0and asking the gods to protect our boys on the frontline...and\xa0the international community that can only do\xa0so\xa0much \xa0as to "condemn" the violence...\nThoughts and prayers are not enough here. An escalation of this situation may lead to a full blown\xa0war that can set this region back for decades.\nAs I am too paralized to form my own thoughts, I\'ll just quote some of the most objective and reasonable comments I\'ve seen on the internets in the ocean of misleading and incorrect information\xa0for the past couple of days.\nWe need all the attention and help we can get to spread\xa0the message out to the world\xa0to "illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet." Maria Titizyan\n"The timing of these events should not be a surprise. Azerbaijan\'s economy is in terrible shape right now. Their currency dropped 40% in value against the dollar in January. Their entire economy is almost completely tied to oil and oil prices are at the lowest point in a decade. Mass protests against corruption and a depressed economy in Azerbaijan have increased in recent months. Invading Nagorno-Karabagh is an attempt to boost nationalism and act as a distraction from real problems at home. All that plus Russia\'s deteriorating relationship with Turkey, a strong political ally of Azerbaijan, creates a terrible condition for Azerbajian to act aggressively against Nagorno-Karabakh." \xa0Erik Yesayan\n"Armed with the knowledge of the history of this conflict, it is easy to discern that it is not in Artsakh\u2019s interests to break the peace and renew hostilities. Instead, it is Azerbaijan that wishes to retake control of land which, due to the political maneuvering of a third higher power, temporarily fell into its hands but over which it has no legitimate claim." Aram Hovasapyan\nRight now both sides agreed on a temporary ceasefire\xa0while Armenia\'s president is meeting OSCE in Vienna and Azeri PM is in\xa0Iran to attend a meeting with\xa0foreign ministers of Iran\xa0and Turkey...hope this will de-escalate sooner than later...\nAdditional reading:\nhttps://goo.gl/ci3lFU\nhttp://goo.gl/x4XTSJ\nhttp://goo.gl/j6jqUe\nhttp://goo.gl/1jv07R', u'entity_id': 33738, u'annotation_id': 5946, u'tag_id': 390, u'entity_type': u'post'}, {u'quote': u"Shouldn't a community that is healthy be better at caring for its members than one where\xa0conflicts take over? (with the shades of grey in between of couse - happiness and conflict are no absolutes).\xa0If so, then learning to minimise\xa0conflict or other kinds of distress\xa0should\xa0make it easier for activists to stay well.\xa0On learning:\xa0we're all doing that, but no matter how much you learn, if you can't keep the lights on with people staying well, then it's only a matter of time..\xa0As an example, a paintbrush factory-turned-contemporary art space where I'm from in Cluj saw a huge blow\xa0after 7 years - one of the splitting factions\xa0has\xa0trademarked the brand with EU's\xa0OHIM, and\xa0anyone in the art community is now somewhat part\xa0of that conflict. The brand is affected, reputations too, and of course the influence achieved over the years and ability to attract funding might be too.. I'm sure there's many stories like that out there. Anyway, just a thought. thanks again for the piece", u'entity_id': 22469, u'annotation_id': 5945, u'tag_id': 390, u'entity_type': u'comment'}, {u'quote': u"I'm curious, how did you learn to deal with conflicts as your network expanded so much over the years? Do\xa0you have a governance structure in place that helps you\xa0work out solutions\xa0inside the community: for example if there are differences of opinions between\xa0gardeners, beekeepers, neighborhood\xa0conveners,\xa0the association members and various groups stewarding Prinzessinnengarten. After all, you only have a limited\xa0number of vegetable beds, right?", u'entity_id': 10375, u'annotation_id': 5944, u'tag_id': 390, u'entity_type': u'comment'}, {u'quote': u'Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water.', u'entity_id': 4134, u'annotation_id': 5943, u'tag_id': 390, u'entity_type': u'post'}, {u'quote': u'Hi Noemi,\nThanks for your reply, its much appreciated!\nYou are definitely right about the controversiality of advice. Main cause of this is, in our opinion, the so-called island approach, where there is little space for a holistic view on the patient! Specialists tend to stay within the boundries of their area of expertise (even if the advice turns out not to be the best for the particular patient).\nWe realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!\xa0\nYour already helping by sharing your thoughts, opinion and experience. We are happy to learn more from experts and get in touch with people that can provide relevant advice!\xa0\nCarry and Denise', u'entity_id': 17838, u'annotation_id': 5953, u'tag_id': 392, u'entity_type': u'comment'}, {u'quote': u'One of the most schizofrenic thing about medical treatments is, in my opinion, controversial advice. I always tell myself that the moment I will have a real condition I will need to ask for many many opinions in order to be satisfied with recommendations.\xa0Even with the "healthy food" trends which\xa0you remark, it is becoming harder and harder to find truth or specialists with real credentials. If hospital dieticians are in the wrong, then the only way seems to be more access to information, and\xa0at some point the more accurate one\xa0is filtered in.\nI like your approach, and maybe reading about other online communities could be useful to\xa0your design: for example another edgeryder in Benin is running awareness raising for cardio vascular diseases\xa0on a massive facebook group, but the reason they manage to keep it relatively uncontroversial, as far as I understood, is that: 1) they don\'t deal with curative or palliative care,\xa0only preventative and 2) they have moderators ensuring a healthy and accurate stream of information. This is their story.\nAlso, how can we help?', u'entity_id': 16818, u'annotation_id': 5952, u'tag_id': 392, u'entity_type': u'comment'}, {u'quote': u"i @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.", u'entity_id': 25790, u'annotation_id': 5951, u'tag_id': 391, u'entity_type': u'comment'}, {u'quote': u"Hi @asimong, super interesting reading about your cohousing community and the strategies you're exploring\xa0in seeking ways to\xa0care for\xa0each other's well being. I'm really curious to know more about your expereince with\xa0restorative circles and if the\xa0members who were trained have begun leading them. This is a model we've been looking at for our group. Our collective mental health, especially\xa0in the last\xa0year, has become a major challenge and focus for us. We are not in a co housing situation now, but we try to share as much of our life and resources we can while living in a neighborhood together in NYC. Would love to hear any of your experiences or\xa0strategies\xa0for\xa0dealing with conflict, care for each others emotional,\xa0mental and spiritual well being.", u'entity_id': 24158, u'annotation_id': 5950, u'tag_id': 391, u'entity_type': u'comment'}, {u'quote': u'For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.', u'entity_id': 788, u'annotation_id': 5949, u'tag_id': 391, u'entity_type': u'post'}, {u'quote': u'My early encounters with the Edgreryders platform, I\u2019ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it\u2019s at odds with standard linear project trajectories and ways of working. So perhaps I\u2019m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.', u'entity_id': 6462, u'annotation_id': 5954, u'tag_id': 393, u'entity_type': u'post'}, {u'quote': u'Where you can find people to support projects', u'entity_id': 541, u'annotation_id': 12091, u'tag_id': 394, u'entity_type': u'post'}, {u'quote': u"Seconded, and also surprised by the diversity of Bernard's interests. Makes me realise the importance of 'connectors' at the festival and the preparation of it, who can see where different fields find each other.", u'entity_id': 11282, u'annotation_id': 5962, u'tag_id': 394, u'entity_type': u'comment'}, {u'quote': u"I see a lot of value in sharing where we are with the work and discovering overlaps - drawing each other's attention that someone in the community is already asking similar questions like ours.\nI was also positively surprised about Bernard's process of really digging in the network to find collaborators around homelessness and mental illness - and looking forward to a few paragraphs with what they intend to do so as to latch onto that to invite those working on the same.", u'entity_id': 8253, u'annotation_id': 5961, u'tag_id': 394, u'entity_type': u'comment'}, {u'quote': u'A friend of mine, expat living in Cluj, has\xa0similar questions to yours and he\'s starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\xa0events branded as such -\xa0"you should spend time with strangers, it\'s healthy and fun".\nIt\'s nice because it starts with a personal burning point and doesn\'t pretent it will find answers. Needing to find\xa0answers can be scary sometimes', u'entity_id': 7822, u'annotation_id': 5960, u'tag_id': 394, u'entity_type': u'comment'}, {u'quote': u'It is very interesting to get to know and understand people, especially trying to know their interests, passions and habits. Body language is a key to getting to know and understanding people well.From the way they greet, sit eat and talk.Some people are introverts , while others are extroverts. some are timid and some are loud and very bold. But ig you find like -minded passion driven young people, lets say not for profit making team members, they will definitely share same goals which might be for collective good of their community. I will recommend, you read more on social phsychology and body language.', u'entity_id': 15150, u'annotation_id': 5959, u'tag_id': 394, u'entity_type': u'comment'}, {u'quote': u"I was wondering:\xa0which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally.\xa0The biohackerspace in Ghent, Belgium where I'm involved surely would be.", u'entity_id': 14446, u'annotation_id': 5958, u'tag_id': 394, u'entity_type': u'comment'}, {u'quote': u'3) A story that binds us together - understanding how our different activities are related', u'entity_id': 788, u'annotation_id': 5957, u'tag_id': 394, u'entity_type': u'post'}, {u'quote': u'This sounds like a brilliant project.\nI really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market.\nMore power to you. I will certainly follow your project very carefully.\n\xa0\nI wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http://empowerhack.io/)', u'entity_id': 9617, u'annotation_id': 5956, u'tag_id': 394, u'entity_type': u'comment'}, {u'quote': u"We try to list all our initiatives inside of Github organization SquatUp.\nWe try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat.\nAll our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us.\nIt\u2019s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other.\nSo if you are a programmer, \u201dapptivist\u201d, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps.\nIf you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time.\nAnd last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue.", u'entity_id': 769, u'annotation_id': 5955, u'tag_id': 394, u'entity_type': u'post'}, {u'quote': u'Back to schools, though. How can we get these ideas, and practices, into mainstream secondary education? Perhaps through, first, alternative education and home schoolers sharing resources? If we did manage to get into mainstream education, that would be such a powerful springboard into the hearts and minds of young people.', u'entity_id': 38977, u'annotation_id': 11733, u'tag_id': 2006, u'entity_type': u'comment'}, {u'quote': u"I hope we can 'break out' more with these ideas, especially with the next generation!  I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)!  It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering.\n              \n  \n\n  \n    \n    \n      Cancel\nSave", u'entity_id': 38981, u'annotation_id': 11732, u'tag_id': 2006, u'entity_type': u'comment'}, {u'quote': u'School/university improvement & quality evaluation', u'entity_id': 6293, u'annotation_id': 12092, u'tag_id': 2006, u'entity_type': u'post'}, {u'quote': u"We're currently involved in a Horizon 2020 project, researching ways to introduce making into junior schools, encouraging engagement with Science, Technology, Engineering and Mathematics, and we'd welcome collaborations with other research projects. Hope to see some Edgeryders here in Sheffield soon!", u'entity_id': 14151, u'annotation_id': 5965, u'tag_id': 2006, u'entity_type': u'comment'}, {u'quote': u"part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on\xa0increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be", u'entity_id': 848, u'annotation_id': 5964, u'tag_id': 2006, u'entity_type': u'post'}, {u'quote': u"In most of Europe schools have no money (I do not know the situation in Flanders). But they make great partners. In Italy, we have a legislation (and, by now, a tradition) of local businesses supporting extracurricular activities in schools. Good school principals build a network of local businesses they work with. So, it could work like this: you involve a school, then \u2013 together with the school principal \u2013 you target local businesses to support the activity.\xa0\nAnyway, @WinniePoncelet ,\xa0congrats, that's a great project.\xa0I live in Brussels, and will keep you guys on the map with a view of looking you up. We visited Gent just a couple of weeks ago with @teirdes \u2013 we would have knocked on your door if we had known you existed!", u'entity_id': 18286, u'annotation_id': 5963, u'tag_id': 2006, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23836, u'annotation_id': 12098, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Thank you for making the connection @Noemi ! I so far framed this project in economic terms ("economic empowerment" etc.) but now that you say it, and after reading about @Jenny_Gkiougki \'s attitude above: yes it\'s obviously also political. Coffee is actually a quite extreme product: depending on what coffee you buy, you might vote for extreme labour exploitation (as in: 0.81% of sales prices going to the farm workers, as I calculate in this post on our project blog). Or you might vote for viable small businesses and giving them an opportunity to invest and expand (while also sending their kids to school etc.).', u'entity_id': 13267, u'annotation_id': 12097, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Exactly the same point about young men not being catered to was made by @Alex_Levene in the context of The Jungle. We have been fantasizing about "emergent" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.', u'entity_id': 16195, u'annotation_id': 12093, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"This is great @Aravella_Salonikidou! I have heard about your project and have 'seen' you virtually here and there on facebook, mainly through Room 39 and Steki Metanaston groups/pages, as I can understand that you are also helping the people there. I am also involved with some of the groups at Steki so we could perhaps meet there sometime, or at Micropolis, another social space nearby where this R2R call center project is based. I would love to see how we could possibly collaborate and help each other and I am sure that there is a lot to share/learn from the work that we and other people in our networks, are doing. I will connect with you on facebook to stay in touch!", u'entity_id': 19572, u'annotation_id': 12096, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 28264, u'annotation_id': 5990, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Only after some months I came back to check the post and i found that someone ( @Rune ) replied with a comment. So, I got in touch with Rune and planned to meet at Master of Networks that took place at WeMake in Milan.\nWe could discuss for long and shared many points of view.\nSince then we have been talking about a common little project and how to realize the shared idea of open care to involve and empower patients. We even agreed on writing a academic paper together.\n\xa0\nThanks to the digital ethnography the first results of the network analysis were the metrics about involvement of users. Opencare staff users were the most present and with a higher number of posts and comments.\nThe most active two persons on opencare infrastructures, but not from the staff, were @Federico Monaco (ranks 7th by in-degree) and @Rune (ranks 13th) (for further information check: https://edgeryders.eu/en/opencare-research/the-wonder-of-open-notebook-science-opencare).', u'entity_id': 862, u'annotation_id': 5989, u'tag_id': 396, u'entity_type': u'post'}, {u'quote': u'Thanks for your interest for our work and model.\nOf course there\'s certainly room for export of some tools, trainings or even more... But we would like to discuss it more thorougly\xa0 with you on skype, to see what could be the plan and what are exactly your needs.\nWe are very busy at the moment, preparing our "registry week" end of this month, so we will contact you in the beginning of July to make an appointment with you on skype.', u'entity_id': 17902, u'annotation_id': 5988, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made \xa0exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.\xa0\nI will love to work out something with you. Lets connect. get in touch at : (+237) 670708533\n:Looking forward to read from you soon.', u'entity_id': 27830, u'annotation_id': 5987, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Hello dear, I am from BANGLADESH too. Glad to know there are such nice thoughts about other people in your plans. It is high time we take an action about these because otherwise who will? All the best with your proposal. I have a project too, visit maybe? :\nhttps://edgeryders.eu/en/one-simple-solution-for-global-warming-to-save-my-country', u'entity_id': 8421, u'annotation_id': 5986, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"Great! Let's talk on Skype if you're up for that @dfko . I read @trythis \xa0is also interested in joining the discussion. You can find me under my name on Skype (or Twitter)\xa0and we can find a moment to call via there.", u'entity_id': 18398, u'annotation_id': 5985, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Hello Rozina,\xa0\nreally nice to read about your approach to redesign communities and to get more involvement on a local level. Great that such initiative gets the respons of the local autority. Would you be interested to share your story at the Brussels Open&Change Workshop, it would be nice to hear your story and share it with other people to craft new durable solutions out of it. You can find the mapping of all contacted persons that i did at the moment here:\xa0https://metamaps.cc/maps/2175 , and you can contact me through mail if you want to discuss further.\nevent page:\xa0https://www.facebook.com/events/280924708934187/\nKindly regards', u'entity_id': 15721, u'annotation_id': 5984, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Hi Rezina,\nPlease feel free to reach out if you need me. I can also link you in conversation to my Dad who has a much more detailed and in-depth knowledge of the whole system here in the UK.', u'entity_id': 12578, u'annotation_id': 5983, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"I hope you don't mind if I reach out to you, with your experience and knowledge of the BIDs in your area in the future.\nThanks again!\xa0\nRozina", u'entity_id': 11534, u'annotation_id': 5982, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Hi, @trythis, I did some research when my children were small. There are a number of patents (probably run out now) having excellent solutions. I think the solution is probably a two piece combination:\xa0\n1 controlling unit\n2 disposable/washable sensor\nAt the time I considered a simple humidity sensor (measuring the impedance in the diaper, but its only effective for urine. What is the current state of gas detectors? A small one that could detect some compound in feces?', u'entity_id': 17399, u'annotation_id': 5981, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"@dfko and me ended up Skyping on Monday. It was kind of last minute after long silences and trying to find overlap in each of our hectic agendas. Sorry @trythis and @Alberto ! I'll try to give a short summary. We discussed that as I'm more active on ER, I can serve as a link here.\nThe project is still going well in technical terms. Only now, due to time and communication constraints, international collaboration seems possible. A\xa0local group in Sydney just launched a few weeks ago and already made good progress. Other groups are open to launch a local chapter.\nWe'll be launching a chapter\xa0in Belgium to see if our community is up for joining this. Like that\xa0we will test the international collaboration and see where it leads us, perhaps others will join as well.\nThere's a diversity of angles, eg. we could contribute more in terms of communication, while the others are more technically adept. It's\xa0interesting to me that each group can have their own approach, and all contributing to the same goal.\nI'm reaching out to the other labs in Belgium to see if they are up for joining. There's already a good diversity there (arts, technical, educational, ...).\nDoes anyone have any ideas in terms of collaboration process? We're in a new field to set this up at such a scale.", u'entity_id': 23778, u'annotation_id': 5980, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"I'm sure there are more people with similar stories and who would love to help you\xa0- us included. Let me know if you want to skype sometime to discuss what we can contribute. Have you reached out or collaborated internationally before?", u'entity_id': 14307, u'annotation_id': 5979, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'If you want to stay informed, let me know your email address and I can add you onto our list. It sounds like you could add a lot of useful knowledge and experience so I may well want to get in touch at some stage and tap into that. Would that be OK?', u'entity_id': 27642, u'annotation_id': 5978, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"Hi @Rune,\njust got on this comment now. Great! Let's get in touch.\nmonaco.federico@gmail.com", u'entity_id': 26948, u'annotation_id': 5977, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Hi @Tomma I wrote you a PM. If there still is something I can perhaps help with give me a ping. Regarding tools there are certain methods that use almost 0 tools but can still get a lot done. https://cocreate.localmotors.com/nowbreakit/epoxy-minimal-mess-small-footprint-approach/', u'entity_id': 27795, u'annotation_id': 5976, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'hello @dante i went carefully through all your links and was really impressed by all the data and information you found about the different situations in Brussels. I would like to discuss further and share some more insight. Are you around Brussels for the moment?', u'entity_id': 20274, u'annotation_id': 5975, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"@Moushira,I'm sorry to hear that it's a 'stellar' solution. We try\xa0to be very practical, applied and earth bound. stage = \xa0version 2.x forked from experience 1999. Hardware\xa011 & 2.0. (Sorry,\xa0It's an iterative process.) We are prototyping the concept within the next weeks.\nLet's have a chat/brainstorm. I'm very interested.", u'entity_id': 28458, u'annotation_id': 5974, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Also the project of @Yannick seems very interesting and I would like to know more\u2026 could you give us more details?\nAs we announced we launched a challenge. \n\xa0\nCould you read it and tell us if you think it\u2019s interesting written in this way or if you want to change something.. Every your suggestion will be precious!!!\n\n\xa0\n\nNow we are starting to disseminate the challenge among some local partners, NGOs, associations that are working with us, but also among other local italian municipalities.\n\n\xa0\n\nCould you help us to engage other political actors, as @Alberto suggested??', u'entity_id': 29961, u'annotation_id': 5973, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'Thanx for sharing @ChristinSa! \xa0It could be nice to meet you! We run "next door\'s" project and we don\'t know each other. Now I think we have this chance. I\'d like to know more details and how I can help.', u'entity_id': 19561, u'annotation_id': 5972, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"@aravellasalonikidou Hello Aravella , I am in the middle of organizing and planning my tour to Greece. I would like to fix date(s) with you. What do you need from me? What could I offer? To the Thessaloniki projects you're in i? Maybe have a skype conversation this week? I would like to fix dates for the beginning of december. Would that be allright with you?", u'entity_id': 26039, u'annotation_id': 5971, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"@ybe I'd like to know when will you visit Greece. I think it will be helpfull for the team.", u'entity_id': 13540, u'annotation_id': 5970, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"@ybe thank you for your interest! I' d like to know more about your work but there something wrong with the link. Could you repeat it?", u'entity_id': 11310, u'annotation_id': 5969, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"Dear @ybe, can I propose that we do the discussion in a shared document, i'll send you the link. Then it could evolve into some structured persitent document serving others sharing our thoughs?", u'entity_id': 28733, u'annotation_id': 5968, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'I suggest a Skype call early next week. Perhaps Tuesday. you can email me alexalevene[at]gmail[.]com', u'entity_id': 27318, u'annotation_id': 5967, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u"I would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? 'Help with 'secondary' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal\xa0 conversation? Should we provide time for individual help too?How many people are involved?", u'entity_id': 26955, u'annotation_id': 5966, u'tag_id': 396, u'entity_type': u'comment'}, {u'quote': u'How we can consent to things that happen to our body.', u'entity_id': 38787, u'annotation_id': 11888, u'tag_id': 1943, u'entity_type': u'post'}, {u'quote': u'Modification as constancy\nFinally, another way resilience can be created is by being in a constantly changing environment. Therefore Huis VDH doesn\u2019t have fixed spaces. Every room can be rearranged to have a different use. Having this as one of the ground rules, we create a constant reality of change that makes us well trained in the art of adaptation, a virtue needed in times of crisis. In September, we will be, thanks to @Nadia, hosting the Open Care Weekend for Brussels.We see it as an opportunity to use our space for a common goal and adapt it while having people using the space. It will be our first external happening and we are really excited.\nWhen working for Huis VDH, I have a phrase by Bachelard that always comes to mind: \u201cOur House is our first universe, a real cosmos in every sense of the word\u201d We can\u2019t forget about the complexity of a home when we want to harmonize it. In cosmos, planets collide, new stars are born and a black hole sometimes sucks up even galaxies. This will be the same for people, ideas and principles. The most important for the wellbeing of this microcosm will be the search for constant balance.', u'entity_id': 520, u'annotation_id': 5992, u'tag_id': 398, u'entity_type': u'post'}, {u'quote': u'Because if it is, this would make a fantastic pattern of what we call open care. What "open" is about, is that the separation between producers and consumers becomes blurred. In open source software, you help improving the software that you use instead of buying a commercial project. In mental health, you improve your own condition as a patient by becoming a healer yourself. This makes plenty of intuitive sense, and has the additional advantage that it has a very sustainable economic model.', u'entity_id': 20042, u'annotation_id': 5993, u'tag_id': 399, u'entity_type': u'comment'}, {u'quote': u"You're right, in the CarrotMob people, as in the money spenders, are supporters, because they do it for the cause more than financial consumption. NB they are different than the civic and environmental activists and may not be prone to acting by themselves or coming to your meetings. But they are a force in that they can be activated in well designed campaigns. It's like awareness raising, but with actions as outputs (in many cases it means buying from those businesses to reward their move towards greater sustainability).", u'entity_id': 17073, u'annotation_id': 5994, u'tag_id': 400, u'entity_type': u'comment'}, {u'quote': u'It is a market clearing mechanism, but a clearing market is, in itself, a good thing.', u'entity_id': 19066, u'annotation_id': 5995, u'tag_id': 401, u'entity_type': u'comment'}, {u'quote': u"@Damiano, thank you for sharing your ongoing work and thoughts here! It reflects something I've been considering a lot lately, which is how individual spending choices can be used to reflect and support our values.", u'entity_id': 14269, u'annotation_id': 5996, u'tag_id': 402, u'entity_type': u'comment'}, {u'quote': u"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!", u'entity_id': 859, u'annotation_id': 6000, u'tag_id': 405, u'entity_type': u'post'}, {u'quote': u"Il tuo progetto in un tweet*\n\n\n\n\n\n\tDoc.doc \xe8 la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica pi\xf9 completa possibile.\n\n\n\tBisogno o problema che il tuo progetto cerca di risolvere*\xa0\n\n\n\n\n\n\nSempre di pi\xf9 patologie complesse necessitano della collaborazione tra molti specialisti della cura.\n\nA questi diversi professionisti manca per\xf2 la possibilit\xe0 di comunicare e condividere informazioni su una piattaforma dedicata.\n\nL\u2019attuale procedura di lavoro evidenzia i seguenti problemi:\n\n\nDelega al paziente la responsabilit\xe0 nel fornire le corrette informazione relative al proprio caso.\nRende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi.\nNon permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all\u2019incontro con lo stesso.\n\n\nDoc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura.\n\nInoltre la progettazione UX \xe8 stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un\u2019email.\n\n\n\n\n\tUtente finale, individui e/o comunit\xe0 di riferimento*\n\n\n\n\n\n\nIl prodotto \xe8 pensato per i medici, ma i maggiori benefici andranno ai pazienti.\n\nDoc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (pi\xf9 pianificazione, pi\xf9 chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando.\n\n\n\n\n\tSoluzione, breve descrizione del progetto*\n\n\n\n\n\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\nInoltre, in una fase successiva, sar\xe0 possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro\xa0categorizzazione per patologia.\n\n\n\n\n\tTecnologie utilizzate o che vorresti utilizzare*\n\n\n\n\n\n\nLo strumento che abbiamo progettato si esprimer\xe0 attraverso un\u2019applicazione mobile per ambienti Android e iOS, che verr\xe0 quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l\u2019utilizzo del software il pi\xf9 immediato possibile. E\u2019 comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform.\n\nIl servizio cloud potr\xe0 essere sviluppato in NodeJS, con basi dati MongoDB e MySQL.\n\n\n\n\n\tSito web (o social network)\n\n\n\n\n\n\nIn fase di pianificazione.\n\n\n\n\n\tLicenza, che pensi di utilizzare\n\n\n\n\n\n\nOpensource\n\n\n\n\n\tStato attuale del progetto*\n\n\n\n\n\n\nIl progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\n\n\n\n\n\tConsiderando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto.\n\n\n\n\n\n\n1.0 Scoperta\n\n1.1 Osservazione del contesto\n\nDoc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d\u2019occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti.\n\n1.2 Acquisizione di idee, spunti, intuizioni\n\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\n\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\n2.0 Definizione\n\n2.1 Analisi delle soluzioni\n\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\n\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\n\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\n\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\n\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\n\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\n\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n\n3.0 Sviluppo\n\n3.1 Progettazione e prova del prototipo\n\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\n\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\n\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\n\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\n\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n\n4.0 Rilascio\n\n4.1 Completamento del prodotto/servizio\n\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\n\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\n\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\n\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\n\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.", u'entity_id': 33729, u'annotation_id': 12104, u'tag_id': 2009, u'entity_type': u'post'}, {u'quote': u'This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a\xa0triage system that helps participants understand the complete picture of a person\u2019s health first through a longform interview, followed by periodic \u2018check-ins\u2019 or urgent calls with the committed group. \xa0case \u2018health practitioners\u2019 are understood as those who share the responsibility of one another\u2019s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a \u2018health card\u2019 is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation,\xa0and solidarity.', u'entity_id': 826, u'annotation_id': 6004, u'tag_id': 2009, u'entity_type': u'post'}, {u'quote': u"@Alberto That is a beautiful example of this harmful shift towards 'control' and 'planning', inspired by uncertainty and distrust, while we should be shifting towards a dynamic\xa0interplay between 'noticing' and 'steering', inspired by best estimates and trust.\nI do think that institutions and companies are (perhaps unknowingly)\xa0looking for these qualities\xa0when you see trends in expectations set by job offerings, although they use different words. Yet ironically, those companies and institutions seem to lack the 'noticing' and 'steering' qualities to realise what they are actually\xa0looking for and thus be good at recruiting the people who have what it takes.\nYou have a good point about isolation and depreciation of skill sets. Keeping your workforce up to date entails both education and turnover.", u'entity_id': 30485, u'annotation_id': 6005, u'tag_id': 407, u'entity_type': u'comment'}, {u'quote': u'The program was for all students. As far as what was the \u201ccrossover\u201d there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone\u2019s inquiry. Which made the students in control of the situation.\xa0 Which is always of value.', u'entity_id': 27824, u'annotation_id': 6006, u'tag_id': 408, u'entity_type': u'comment'}, {u'quote': u"Hey Noemi! Thanks for your reply. We don't feel the need to position ourselves so clearly. To the contrary: we would like to cooperate with as many\xa0diverse\xa0actors as possible. Being anti anything is what we try to avoid. We'd rather build something better together than criticize the old.\nHowever, I've noticed that in our field, making choices of who you work with and what you do, positions yourself clearly on\xa0a polarized spectrum no matter what. It's not always the case surely, but something that is there nevertheless.\nThanks for sharing your experience. You're right; if what we do is in allignment with the values then the results will speak for themselves. This dilemma of choosing may well just be fear of shutting certain doors. Other doors will open and as long as our moral compass works, we'll get to where we want to be", u'entity_id': 15018, u'annotation_id': 6008, u'tag_id': 409, u'entity_type': u'comment'}, {u'quote': u"With Edgeryders we had always had\xa0some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It's somewhat natural, as long as the work is aligned with our mission\xa0and speaks for itself.", u'entity_id': 7536, u'annotation_id': 6007, u'tag_id': 409, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 6010, u'tag_id': 410, u'entity_type': u'post'}, {u'quote': u"Is the liquid democracy application up somewhere, or have you tested it? I think you're spot on to assume people will only use new democratic tools if they are convenient. I believe this to be true even for those already educated in civic participation, and more broadly this also\xa0stands for engagement with most technologies - especially given the broad offer.", u'entity_id': 6848, u'annotation_id': 6009, u'tag_id': 410, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 6014, u'tag_id': 411, u'entity_type': u'post'}, {u'quote': u'They need one solution that fits many, because the modern health care model reduce human life in cost/benefit analysis to numbers. However, as long as assistive technology is not used it\u2019s difficult to identify exactly where to improve it. \xa0We know that consumers must be involved early in the development, it\u2019s difficult to do so in a realistic setting. We realize that marketing assistive technology is different than selling a robot vacuum cleaner.', u'entity_id': 516, u'annotation_id': 6013, u'tag_id': 411, u'entity_type': u'post'}, {u'quote': u'Nevertheless, the popularity and effectiveness of CMACs speak for themselves. All too often, the state-established institutions of care remain locked into a post-imperial perspective, treating the body, the patient or the polis as the passive subject of a homogenised, top-down intervention.', u'entity_id': 549, u'annotation_id': 6012, u'tag_id': 411, u'entity_type': u'post'}, {u'quote': u"Thanks, @Alberto. Couldn't agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.", u'entity_id': 15329, u'annotation_id': 6011, u'tag_id': 411, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 695, u'annotation_id': 6021, u'tag_id': 412, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 19759, u'annotation_id': 6020, u'tag_id': 412, u'entity_type': u'comment'}, {u'quote': u"Hey @Noemi, this is just something cultural that people have always been doing in\xa0Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is\xa0not allowed to cook in public parks any more even though they use\xa0a traditional\xa0portable clay pot for coal/making fire and there is no hasard in cooking open air in such way...\nWhen people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.", u'entity_id': 18382, u'annotation_id': 6019, u'tag_id': 412, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 6018, u'tag_id': 412, u'entity_type': u'post'}, {u'quote': u"I can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco\xa0where people gather in parks in the evenings and bring their tagine out to cook\xa0and mingle while enjoying the cool breeze from the Atlas mountains...", u'entity_id': 15186, u'annotation_id': 6017, u'tag_id': 412, u'entity_type': u'comment'}, {u'quote': u'We set up a 60 people afternoon event in a week, in a very lightweight mode.\nI think it\u2019s worth sharing why and how we did it:\n\n\nContext exists - a Repair Cafe Week full of activities in town and already talking about circular economy. That helped promote the event in only a few days time in a period quite busy for Cluj, helped it be part of a bigger mobilization and also get some media attention.\n \n\nLarge enough venue is available - The Paintbrush Factory, a former factory-turned-contemporary-art-collective has a cosy room for events equipped with minimal cooking infrastructure; we were able to bring add-ons with no problem (except the lights going off for like an hour, but well, can\u2019t plan it all! :-))\n \n\nCrazy levels of enthusiasm and capacity are just.. there! I don\u2019t know if it\u2019s the food effect, but so many people chimed in and brought own assets to the table: Cimbru, a local food truck with patient cooks helping everyone find a role; Casa de Cultura Permanenta, a local open house already prototyping circularity in every possible way! and their resident volunteers; FWC team coordinating on an online wiki to plan and split tasks; photographers supporting the cause; Local markets and a large shopping centre donating throw away food and also pretty decent one! It took us up to two hours to collect 35 kg of fruit and vegetables. You spend more time getting to and from locations than on the actual food collection.\n \n\nOutstanding community connectors gently nudging everyone - how else could you mobilize effortlessly a team of teams?! @Ponyo \xa0is one of them for sure.\n \n\nSome pocket money is available\xa0- we spent 200 Romanian lei (<50 EUR) in cash shopping for extra ingredients. That\u2019s it, the rest of the funding was in kind (think small contributions like cooking tools brought from home, venue and electricity offered for free, gas to get to the venue etc).\n \n\nSaturday afternoon time - people were available, they came and enjoyed working in the kitchen or just hang out as you\u2019d usually do on weekends.\n \n\nAppetite for food, drinks, conversation - we had 5 lovely courses including desserts (will just say: La Bonbonniere\xa0:P), a variety of locally sourced drinks and pretty diverse people, although mostly young.', u'entity_id': 798, u'annotation_id': 6016, u'tag_id': 412, u'entity_type': u'post'}, {u'quote': u"Thank you for compliments, @Noemi! I have something to add to this collection of great ideas and initiatives. In Berlin, there is a group of young Philipino/Brasilian\xa0artists called Nowhere Kitchen who cook with surplus food. But there is so much more to it - they engage the people in chopping and preparing, but they take over the cooking process, so we do not end up with random, kind of awful food. Their recipes were stunning and combinations of tastes surprisingly delicious. The whole evening a guy was jamming to it some ambient/psychedelic stuff on guitar, and when the serving time came, they did a whole spiritual\xa0performance before we started eating. I've been there, and some people from the street came around to join in. It was beautiful! And I think in such a delightful form eating leftovers can be dignified, and very political. (OK, some say the food didn't come out always as great as I remember it -\xa0that's probably the rule of cooking with random leftovers).", u'entity_id': 23981, u'annotation_id': 6015, u'tag_id': 412, u'entity_type': u'comment'}, {u'quote': u"Respected,\n\nIt is my pleasure to introduce myself. Unique experiment of nature, kind, sweet, cheerful, positive, charismatic, did I mention good looking? I have a couple of certificates\u2026\u2026and so on\u2026 curious and creative, eager to learn, to travel, have fun\u2026\n\n\xa0 I live in Serbia, the Balkans, reason enough to be interested in current events in the world and region. Turbulent past, dynamic present and an uncertain future, burdensome by intolerance and conflicts in the region, which I personally found not only unnecessary but also totally crazy, because we all have the same desires and dreams, to live freely, love unconditionally, have fun, learn, be independent, travel, have amazing adventures, the best parties \u2026. without regard to national and religious affiliation, skin color, eye color\u2026 there are too many prejudice, inequality, unprotected and vulnerable people, there is gender inequality, intolerance, social injustice, poverty, hunger, disease, non-existent or inadequate health care, problems of refugees, racism\u2026. I do not know why and I`m trying to understand. Injustice affects me terribly. We learn history in order to avoid the mistakes which were made and were pretty catastrophic, and to me it seems like we constantly repeat the same errors. I have learned not to judge in advance, that all deserve respect, a smile, a kind word, that the mind is like a parachute works only if it is open, that in the period of globalization, IT progress, revolutionary discoveries, scientific achievements, robotics, nanotechnology \u2026 we must not think about limits, all barriers and borders exists\xa0 only in our heads., I perfectly understand what it means conflict, and detest it, I hate arguing, hate conflicts. I watch the news, read a newspaper and follow social networks and\xa0 I can say there is too much violence, too much suffering, too much of everything negative, the constant threat of war, terrorism\u2026just too much. I want a better world, a better society, a better life for all, it is important to take care of others, to be open-minded. I want more, I need more, no one should be afraid for ones lives, children must not be hungry, barefoot, on the streets, women must not be abused, people should not be expelled from their homes, the world gone crazy and we desperately need all people of good will who want and have the knowledge and strength to fight, not only to philosophize and criticize, but also commit to work, to improve our society, day after day, devotedly\u2026\n\nThey tell us that as individuals we cant do anything, at least anything important, that we are still small, young and inexperienced, but adults forget, and sometimes reduces our value, ignored it, forget it under the weight of today circumstances. We are thirsty for knowledge and education, we might be weak, but snowflakes are gentle and weak until they connect, then they become strong. We need to connect, as snowflakes, the youth of the region and the world, only united we can be strong, important, perhaps adults hear us and listen. When children quarrel, they quickly reconcile because its not important to be right, but to be happy. We should accept that we do not have to agree on everything, sometimes can agree to disagree, but we have to respects others' way of life, other people's opinion, that we can discuss about everything, not argue, talking in order to generate ideas, information, positive energy.. To find the solution for all problems and dilemmas, make projects, succeed.\n\nSomehow it feels despair and uncertainty it should not be so, we are young, we have desire and we can change everything that we do not like.\n\nIt is essential to connect, and I read that nothing brings people together as well as living a happy accident, if it is true, We, all\xa0 in this region, the Balkans, we have more opportunities to be close, strong and organized than anyone else in the world, everything we've been through good and bad, sometimes on opposite sides, unfortunately, but we survived, war and killing, and we must never repeat it, we also\xa0 sang and celebrated and rejoice together, it was perhaps more sadness and unhappiness, but if there is justice in life, in future we should have only lucky days, happiness. Good neighborly relations like friendship and trust builds, slowly and gradually, all that is good and valuable in life, takes time. First we need to forgive. Forgiveness is possible only with understanding, that is why this camp is super idea, to understand together what had happened, impartial, draw lessons from history, in order to continue, this time better, smarter.\n\nThe goal is to make the world a better and more humane place, sustainable, use space in the best possible way, with full respect of nature and population needs, because that's the point of studying, find the best way to reconcile nature and society to meet human needs, give vision of the future, the objectives of the future development.\n\nEverything is connected and the problems must be considered as a system, If one part of the system does not work properly, it reflects on other parts of the system", u'entity_id': 854, u'annotation_id': 12105, u'tag_id': 2010, u'entity_type': u'post'}, {u'quote': u"During the last six months, I have been attending almost all the event on Platform Cooperativism in Europe.\nEven tough is exciting what is happening, there isn't a model that reached a dimension that can be compared to any dominant platform, and some points are missing from the global discussion.", u'entity_id': 6300, u'annotation_id': 6028, u'tag_id': 2010, u'entity_type': u'post'}, {u'quote': u'Gehan: In GalGael: we don\u2019t live together but we work together. Drug & alcohol policy but this doesn\u2019t keep people safe. Collective policing versus authoritarian policing - still limited; how to go beyond the reach of policy - perhaps by creating working principles that guide day to day interactions and relations?', u'entity_id': 6415, u'annotation_id': 6027, u'tag_id': 2010, u'entity_type': u'post'}, {u'quote': u'And achieving to create an cooperation community is a very, very smart idea as long as it will be promoted and shared with the community you live in or are planning to support. I would have a special request, as soon as you are planning an idea which will save and help the humankind, please try to create a fair cycle of the equality.', u'entity_id': 26041, u'annotation_id': 6026, u'tag_id': 2010, u'entity_type': u'comment'}, {u'quote': u"Hey Noemi! Thanks for your reply. We don't feel the need to position ourselves so clearly. To the contrary: we would like to cooperate with as many\xa0diverse\xa0actors as possible. Being anti anything is what we try to avoid. We'd rather build something better together than criticize the old.\nHowever, I've noticed that in our field, making choices of who you work with and what you do, positions yourself clearly on\xa0a polarized spectrum no matter what. It's not always the case surely, but something that is there nevertheless.\nThanks for sharing your experience. You're right; if what we do is in allignment with the values then the results will speak for themselves. This dilemma of choosing may well just be fear of shutting certain doors. Other doors will open and as long as our moral compass works, we'll get to where we want to be", u'entity_id': 15018, u'annotation_id': 6025, u'tag_id': 2010, u'entity_type': u'comment'}, {u'quote': u'Our group is based in Thessaloniki but it is connected with a global network of tools and projects with the vision to expand an alternative and fair economy through cooperation, or let\u2019s say to create sustainable economic solutions through cooperativism. In Greece there is already many cooperatives, especially created as a result of the economic crisis, either under a legal form or remaining informal, and we want to support their networking as well as to expand the network through creating new cooperative initiatives.\nOne of the tools to connect those and at the same time to untie ourselves from the banking system is alternative currency networks and FairCoin is already doing this on a global level. However the currency is just a tool, what is most important is the vision and the values that incorporate the efforts. In Thessaloniki, we started quite recently but there is already some places that joined and we hope to see more of them joining very soon. In Greece there is more places in Athens and the island of Crete, where FairCoin is further connected to the local currency of Herakleion. @Noemi you can find a global directory with all the places using FairCoin here.\n@WinniePoncelet this is certainly not an easy task, especially when the effort is being made on a global scale and you are trying to create change in a global scale. But we hope that cooperation can help with all the progress. The biggest challenge I see is trust and empowerment, people to trust each other and believe that collectively they can change things. So trust to each other and trust to collective power, rather than being disconnected and antagonistic. From so many sides we are being trained to not trust each other and our collective power, but I believe that culture is gradually changing and people are becoming more inclined to create communities and cooperate. Technology and to a certain extent the economic crisis have supported that.\n@Simonedb I agree with you that it is extremely important to remain open to other ideas and projects, and this is why we were so happy to participate at the Edgeryders workshop in Thessaloniki where we met this amazing community of people! At the same time, it is also important to have clear values and objectives, so that people trust you. So openness, cooperation and values can go a long way and can bring very creative results, especially on a large or global scale.\nI invite people interested in our efforts to visit FairCoop\u2019s website and if you wish to be more actively involved or have ideas to share, please leave a message or join our telegram groups which we use for networking and communication, by sending an e-mail to: coop@fair.coop!\nPS: @Noemi, I don\u2019t think we have met before, do you mean the Festival of Solidarity and Cooperative Economy in Athens? I have been there, but since I live in Thessaloniki I am not part of the organizing team. However our group here is connected with the people in Athens and also people organizing the festival. There is another Christina among them so perhaps this is who you mean?', u'entity_id': 24572, u'annotation_id': 6024, u'tag_id': 2010, u'entity_type': u'comment'}, {u'quote': u'FairCoop is, in fact, a lot of projects with a unifying mission behind all of them: to build alternative, grassroots-driven economy, which will be participatory, fair and belong to the people. All of the members of our global collective want to see that happen. \n\xa0\nThe FairCoop Thessaloniki is a local group linked to the global movement. We\u2019re all dealing in different ways with the establishment of tools and processes that would bring about alternative, cooperative economies. \n\xa0\nIn the case of our city, to some extent, it\u2019s done by implementation of alternative cryptocurrency, faircoin, developed by the FairCoop. We try to understand ways in which this currency, and a local currency introduced after the crisis, can coexist and supplement each other. In any case, the goal is to free ourselves from proprietary technologies and capitalist banking systems - by creating a parallel circular model, ideally connecting and supporting a whole ecosystem of projects locally and globally. \n\xa0\nThere is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community\u2019s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds. \n\xa0\nWe also plan to replace the public system with a cooperative one. For now, it\u2019s a hurdle - but in the future, it will be possible. The condition? The strong community behind it. \n\xa0\nFairCoop exists since 2 years, and in Thessaloniki, it started a few months ago. We have links with dozens of cooperatives, organizations, initiatives and communities - such as Bitcoin community, P2P foundation, Catalonia Cooperative, etc. We\u2019ve brought on board more than 1000 people so far. Yet, there\u2019s still a lot to be done. We need to connect and build stronger alliances even in the cities - in Thessaloniki, many existing initiatives remain disconnected from each other. We need to develop models of integral cooperation on different levels. Bring decentralized technologies to local communities to make them more resilient. And seed the idea of cooperation, which will replace competition.', u'entity_id': 741, u'annotation_id': 6023, u'tag_id': 2010, u'entity_type': u'post'}, {u'quote': u'Participants are randomly\xa0divided in two groups. People in group A are asked to perform a simple physical act in sync with each other, like clapping hands. People in group B are asked to per form the same act, but not in sync.\nAll participants are asked to play a simple\xa0game where they need to choose between a "cooperate" and a "defect" strategy, like the Prisoner\'s dilemma.\xa0\nMembers of group A have a measurably higher probability to cooperate.', u'entity_id': 19934, u'annotation_id': 6022, u'tag_id': 2010, u'entity_type': u'comment'}, {u'quote': u"My opinion is not worth much, in fact we can be right and agreeing\xa0and still not go anywhere \xa0From the years I've been working in this field, what I've seen is doors opening and an ability from policy makers to listen.\xa0With unMonastery\xa0called in by a city, Futurespotters\xa0by UNDP,\xa0new doors opening thanks to them and other consultancy work, and so on. It feels to me hard to think about large scale change, but seeing a progression makes me more hopeful than at time zero, if that means much.\xa0If Edgeryders is anything of a counter culture movement, than it is also true that from the beginning the position was to open\xa0channels for collaboration between very diverse people. And guess what:\xa0over the years people in\xa0policy making\xa0have joined too, and were honest about their own limitations as institution representatives - for example, this is someone who at the time of engaging was\xa0in the Amsterdam City Council and here asking about basic income and how it would work.", u'entity_id': 7853, u'annotation_id': 12126, u'tag_id': 414, u'entity_type': u'comment'}, {u'quote': u'Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable.\nThe story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017.\n\nIn November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject.\nLisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies.\nIt was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders.\nCristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity.\nThis is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight.\nListening\xa0it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors. \xa0\xa0\nIncluding as the collaboration with the trade association got closed we\u2019ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers.\nGoing where innovation beats\xa0we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into\xa0co-design sessions pivoting around their necessities may generate unexpected outcomes.\nDealing with collective intelligence\xa0is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it.\nThis is where we stand now and the next steps are:\nCo-designing / mobilizing resources\xa0of course we will not predefine outputs, but rather keep the sessions open to any outcomes.\nPrototyping policies\xa0by monitoring and evaluating this experimentation.\nWe are aware that talking about \u201cenforcing\u201d a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process.\xa0Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions.\nIt would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.', u'entity_id': 819, u'annotation_id': 6039, u'tag_id': 414, u'entity_type': u'post'}, {u'quote': u'So the problem of scalability. We are seeing in our City and in Edgeryders, a lot of interesting care projects, community driven, but the idea is that the role for Government is to guarantee the scalability.\nWhat is the scalability?\nIn my opinion the scalability could be possible only if these new solutions, new approaches became part of an open policy making process.\nSo, in our case, the Local Administration has to became an observator, a facilitator of these initiatives, helping them to evaluate their own effectiveness and impact.\nIn our experiences we\u2019re observing many interesting care projects that are developed by communities, using new approaches to care, involving new actors (makers, hackers..)\nThese experiences are helping us to change also our services directly, to manage our services in new ways, trying to recompose the fragmented network of Care.\nI think that Government could be not an obstacle, or a part of the problem, risk that @WinniePoncelet reported, but \xa0(hopefully!!) a part of the solution: if tha PA can change its perspective and tries \xa0not to be THE actor, the only care provider really allowed to do something, but one of the actors.\nAlso, maybe, to guarantee not to fall to a neoliberalism way to solve problems..\n\xa0\nBut in which role?\nWe\u2019are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.\n\xa0\nBut it\u2019s not simple, and of course we\u2019re talking in general.\n\xa0\nWe want to open a challenge about this topic because we would like to stimulate a debate and also find concrete examples about the role that in each project could/should be done by a Public Administration (in particular Municipalities).\nWe\u2018ll share also some stories of our administration that in our opinion are going in this direction, to rethink traditional services in the new context of Care.\nThis conversation could maybe became also a way to create a path for discussing how civil servants could continue to believe to do a \u201creal work\u201d and not just a prescribed, traditional work, @PhilippeDrouillon.\nWhat do you think?', u'entity_id': 27810, u'annotation_id': 6038, u'tag_id': 414, u'entity_type': u'comment'}, {u'quote': u'First when I asked her to give a short opinion about the bottom up imitatives organizing care related projects she responded: I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective. I was really surprised by this ballsy argument so I invited over for a drink on the hottest day of the year (35\xb0C!) and we had a tomato juice and a great conversation.\n\nWe dived immediately into the subject. Care is a government issue for\xa0 her that isn\u2019t at all taken care (pun intended) of. Why does the government give as much power to the pharmaceutical industry for example? Why can Nestl\xe9 become the number one partner of a government organization called \u2018Kind En Gezin\u2019 that helps parents of new-born through the first year? For her our role as activist and change makers is to put pressure on the government to make change on a big scale possible.\nI explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn\u2019t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government.\nBut Ginette isn\u2019t the person to only be sceptic and give critic towards ideas. She likes finding solutions. So before I explain her the principle of the workshop we talk a bit further on the big problems ahead. For her everything can be put into three categories: poverty, elderly care and work ethics. Poverty makes it impossible to take care of each other; it is a vicious circle that is difficult to get out of. Even with the best projects, people without money will not get towards it. Elderly care is also a big problem in European countries, care became profit and it is all about efficiency. Only a rearrangement about how we look at elderly care can get us out of this problem. Finally there is the way we look at work and how it makes us sick: burn out is one of the biggest epidemics of this century and involves pulls the whole family downwards. Not one political party is discussing these problems on a larger scale and that is problematic for her. The resources are there, but the unwillingness of changing is bigger. Politicians aren\u2019t trained to be vectors of change; they are the ones that bring continuity. It\u2019s the civilians that need to push the change and politics to implement it.\nDark times ahead? Maybe, but this discussion made me think more clearly about the workshop and what we need to take notice of when bringing care-project together. Like within the makers movement it is important to find a balance between corporate and counter culture partners, within care it is also important to have an open approach towards policy makers. Yes we are in a ruff path at the moment, and trust is at an all time low towards politicians. But therefor it is the moment to open our arms to welcome them towards new ways of organizing care. We need much more and easier collaboration between projects. We need especially that knowledge of the government to tackle complex problems with multiple partners. We need to take them by the hand and show them what there is possible within an open care system\nThe discussion I want to open towards the community is: Is involving the policy makers important, or will it be obsolete in the future? What kind of dialogue can care taking projects take towards it?', u'entity_id': 726, u'annotation_id': 6037, u'tag_id': 414, u'entity_type': u'post'}, {u'quote': u'I come from Thessaloniki, and my ancestors were refugees. Initially, the response from my immediate environment has been disappointing. My job is in the clothing sector, however, being an elected Municipal Councillor at the City of Thessaloniki, people know my public activity so it was easy to build trust. Furthermore, I am sitting at the Management Board to the Municipal TV100 station. Having many contacts with journalists helped to communicate the action widely. All this combined has resulted in the massive spontaneous response of a community of 1500 citizens from all walks of life. Including people from Europe and the US, who donated waterproof jackets and blankets.', u'entity_id': 737, u'annotation_id': 6036, u'tag_id': 414, u'entity_type': u'post'}, {u'quote': u"I ask because we've gotten involved with local government at times, but we see it as purely strategic, we won't do anything with them that would require some kind of compromise because ultimately we are interested in autonomy from all forms of governance.", u'entity_id': 21004, u'annotation_id': 6035, u'tag_id': 414, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 6034, u'tag_id': 414, u'entity_type': u'post'}, {u'quote': u'A globe-spanning sustained effort to help community leaders, mayors, politicians and fight back against populist rhetoric and divisive narratives.', u'entity_id': 5234, u'annotation_id': 6033, u'tag_id': 414, u'entity_type': u'post'}, {u'quote': u'CAPE\xa0 aims to build a social net for the members, enacts "share & care" principles and provides a framework (legal body) for cooperative economy as well as a space for inter-generational "new", action based, co-operative learning.', u'entity_id': 765, u'annotation_id': 6043, u'tag_id': 415, u'entity_type': u'post'}, {u'quote': u'And achieving to create an cooperation community is a very, very smart idea as long as it will be promoted and shared with the community you live in or are planning to support. I would have a special request, as soon as you are planning an idea which will save and help the humankind, please try to create a fair cycle of the equality.', u'entity_id': 26041, u'annotation_id': 6042, u'tag_id': 415, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20209, u'annotation_id': 6041, u'tag_id': 415, u'entity_type': u'comment'}, {u'quote': u'This is what is happening with a visionary project that is linking alternative and cooperative economy with the needs of refugees in Thessaloniki, Greece. It is a project of a group of people interested in the building of a cooperative economy network, in which I participate as an activist and a researcher of alternative economy. Having completed my PhD in economics in the last spring, I am now interested in continuing research, exploring links between solidarity economy and refugee solidarity movements in wider Greece.', u'entity_id': 792, u'annotation_id': 6040, u'tag_id': 415, u'entity_type': u'post'}, {u'quote': u'we are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market;', u'entity_id': 21382, u'annotation_id': 12301, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u"I neither know or interact with my neighbours.This is wrong, I always thought it is deeply wrong.\n\nCo-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?", u'entity_id': 13198, u'annotation_id': 12127, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'Co-Living:\xa0"Collective policing and policy-ing"?\nSimon from England - be useful to try to get his engagement. Lancaster co-housing. Not working. But builds in lots of protection for you. Sliding scale - when you live with people, how much are you keeping for yourself. It really comes into play when you have kids. That\u2019s when it gets interesting. The parenting dynamic can become tense. It\u2019s always a conversation between the individual and the collective. It might be interesting to hear more about how they\u2019ve doing.\nCommunity in Milano - Bovisa Co-housing. Post on Edgeryders. Premise when we got there was not as anticipated. Lack of understanding at the beginning that this was a communal project. Spectrum between family and \u2018sociality\u2019. Moved over time to sociality but not deliberately. Self-selection. Very organic.\nConnected to sharing everything - vs - sharing common values. Design, expectation, governance.\nWHAT WOULD BE AN ASPECT OF COMMUNITY SPACES LIVING/WORKING/LEARNING THAT YOU WANT TO LEARN AT OPENVILLAGE?\nBernard: Water supply - testing water. Trying to live with off grid. Reed beds. There are people working on this that we can network with. Several proposals have touched on the importance of water, there is energy to work with. or is it also more practical - like plumbing - that you\'re after? Winnie:\xa0some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point\nNoemi: How people learn to live together while also making a contribution in the world. Lifestyle - impact relationship.\nGehan: In GalGael: we don\u2019t live together but we work together. Drug & alcohol policy but this doesn\u2019t keep people safe. Collective policing versus authoritarian policing - still limited; how to go beyond the reach of policy - perhaps by creating working principles that guide day to day interactions and relations?\nJohn: underlying theme would be just asking them what are ways to form alliances without a pre-defined outcome. What is the commitment when people do decide to come/live together? \xa0\xa0\nWhat about you? What would you like to learn about?', u'entity_id': 6415, u'annotation_id': 6059, u'tag_id': 416, u'entity_type': u'post'}, {u'quote': u'Hello @M\xf8rbeck, good to meet you.\xa0\nI am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus.\nThe traditional way to do this was this: you would leave your parents\' house, marry,\xa0settle down with your spouse and have children. This produced a "one size fits all" world, with\xa0most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are)\xa0allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized.\xa0Is this broadly correct?\nBecause if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!\xa0\nhttps://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups', u'entity_id': 6682, u'annotation_id': 6058, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.\xa0\nOur goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.', u'entity_id': 828, u'annotation_id': 6057, u'tag_id': 416, u'entity_type': u'post'}, {u'quote': u'One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, "it\'s just a job" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.', u'entity_id': 21701, u'annotation_id': 6056, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'But the process for joining involves a lot of face time with community members over a number of visits and meetings. \xa0I assume that when it comes to\xa0a vote \xa0for admitting someone, most everyone considers the whole person and whether or not they will be good cohousing companions.', u'entity_id': 15392, u'annotation_id': 6055, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a "Common House" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It\'s quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That\'s partly due to economic factors.\nIt is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I\'d like to focus just on one of the challenges that I see here: how we engage with our own and each other\'s well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally.\nSharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.\nWe do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?\nThis brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on?\nThese are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other\'s resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.', u'entity_id': 830, u'annotation_id': 6054, u'tag_id': 416, u'entity_type': u'post'}, {u'quote': u'http://www.owch.org.uk/\nhttps://www.theguardian.com/society/2015/feb/16/co-housing-people-things-common-live-together-older-people\nhttps://www.dezeen.com/2016/12/09/pollard-thomas-edwards-architecture-first-older-co-housing-scheme-owch-uk/\n\xa0\nhttp://cohousing.org.uk/resource/introduction-senior-cohousing\nhttps://www.jrf.org.uk/report/senior-cohousing-communities-%E2%80%93-alternative-approach-uk\nhttp://www.which.co.uk/elderly-care/housing-options/property-downsizing/432093-cohousing\nhttp://www.housinglin.org.uk/Topics/browse/Housing/HousingforOlderPeople/Cohousing/', u'entity_id': 30613, u'annotation_id': 6053, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'@zazie , co-housing for people that are not (yet) in need of personal, direct care makes sense to me. Because:', u'entity_id': 30534, u'annotation_id': 6052, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'@WinniePoncelet -: There are starting to be some cohousing projects in the UK, but these seem to be focused around shared living for those who do not yet need care (aimed at the over 50s, rather than the more senior). It seems people in such projects envisage sharing a carer as they get to the point of needing help. I\'m not sure of the viability of staying in such a place when serious dementia\xa0 or physical ailments start to occur; equally regular medication may require a qualified nurse and preventative care may require qualified staff on hand 24/7.\nAgain, I do think we need to start thinking about things in terms of the housing we are building. We can\'t just keep building homes for young families or "trendy" flats for young single people. We need to seriously consider social housing, mixed communities, purpose-built homes for the elderly, etc. Mixed housing should be mandatory for large-scale new build schemes, and not just a tiny number of "affordable flats" that the developer can negotiate to build in a completely different city (as is happening now in the UK!). Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn\'t really be interested in.\nI\'d listen to my previous post above on the actual issues of budgets, who pays for what when interacting with the powers-that-be, etc. What I can say from these initial cohousing projects is that they\'re a start, but don\'t yet seem to consider serious (legally covered) nursing care.\n(Are you aware of companies like McCarthy and Stone who build retirement homes, by the way? Perhaps schemes like that could be a way to progress the idea of cohousing and start people living together, with care facilities and good environments provided on top of their existing model.)\n(Final thought - have done some volunteer work in a day care centre for adults with learning difficulties before... Perhaps a similar model, with day facilities and night care facilities built separately, or being more intermingled than just nursing home residents gathered in their particular nursing homes 24/7, would be a good idea. Those who were more capable could use cooking facilities, make and create, etc. whilst in their "day environment," and other age groups or people living in the local area could also come and use such facilities / interact / assist? Again, funding would be an issue, especially in our current environment of service cuts and the loss of community centres and other such facilities. However, in the long run, I do think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS \xa32bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...)\nAgain - the major issue is the fact that we don\'t have joined up thinking, but increasing fragmentation in health and social care. Each individual element is asked to cut costs and reduce facilities, even if that results in massive costs elsewhere...\nI better stop at this point, or I\'ll get political again', u'entity_id': 29962, u'annotation_id': 6051, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u", this reminds me of another Belgian project called DUO for a JOB. Their tagline 'integenerational coaching' sums it up well: older people passing on their skills to young people with a migrant background. Is that something you envision as well? It might be insightful to talk to them as well.\nIn my home town we have a related story going on. The old movie theater \xa0in the city centre, a beautiful building with a rich history and emotional meaning for\xa0a lot of people, was bought by project developers after bankruptcy. They plan to install service flats where elderly that are still okay can live in co-housing with people who need care, like other elderly or young people with a disability. Yet the whole project has a very commercial smell hanging around it. Do you meet similar stories, is there an impact on the sector?", u'entity_id': 24001, u'annotation_id': 6050, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'Hi @LotfiAndSelvi, you say the elderly "are viable resources for the development of our society" - what do you have in mind? Twenty years of working for them must be pretty righ in insights.\nI only know of very sporadic activities that are intergenerational - and most happen around holidays: for example youth taking presents to care homes and spending time with their new grannies for a day or so. It seems to put a smile on people\'s faces, but of course its not substantial, as\xa0what you are talking about.\xa0\nCurious if new (co)living models such as @Simonedb\'s has good news about what can be achieved if generations help each other remain active under the same roof. Are you seeing that Simone or is everyone in your houses still fairly young?', u'entity_id': 8168, u'annotation_id': 6049, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19442, u'annotation_id': 6048, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'Simone, here on Edgeryders, is the chairperson of the first really successful co-housing scheme in Italy. This is his story: I suggest you get in touch, I know hime personally and he is a very nice, helpful personal.', u'entity_id': 13216, u'annotation_id': 6047, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 13152, u'annotation_id': 6046, u'tag_id': 416, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 6045, u'tag_id': 416, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 6044, u'tag_id': 416, u'entity_type': u'post'}, {u'quote': u'2) Where community health workers can come in for complex health conditions is in coordinating access, screening, and adherence to treatment. For example, with HIV. Thirty years ago, the World Health Organization suggested that delivering HIV care to the ultra poor was \u201ctoo difficult, that there wasn\u2019t enough money, it was too difficult to get people to adhere to medications out in the community.\u201d Partners In Health (whose work is very influential for us) showed that community health workers can support people in adhering to HIV medication.', u'entity_id': 564, u'annotation_id': 6062, u'tag_id': 417, u'entity_type': u'post'}, {u'quote': u'How do you build connectivity into each initiative or do you want connectivity only between initiative? If we all want to coordinate, what amount of time/ effort/ resources can we each put into learning to coordinate?', u'entity_id': 541, u'annotation_id': 12302, u'tag_id': 418, u'entity_type': u'post'}, {u'quote': u'central aid and food distribution services', u'entity_id': 39328, u'annotation_id': 11652, u'tag_id': 418, u'entity_type': u'post'}, {u'quote': u'Most of them point at the need for better\xa0coordination among community leaders, citizens\xa0donors, organisations,\xa0and other businesses and organisations in the ecosystem..\xa0What has been a major challenge for you as you went on the road?', u'entity_id': 7915, u'annotation_id': 6066, u'tag_id': 418, u'entity_type': u'comment'}, {u'quote': u'If the participants in the event want to see the transnational cooperation happen in practice, then they will have to learn to think and work as networks of individuals', u'entity_id': 5234, u'annotation_id': 6065, u'tag_id': 418, u'entity_type': u'post'}, {u'quote': u'Efficient and sustainable coordination across geographic, linguistic and technological barriers.', u'entity_id': 5234, u'annotation_id': 6064, u'tag_id': 418, u'entity_type': u'post'}, {u'quote': u'There was distress tolerance, learning how to improve coping skills, groups range in\xa0diverse areas.\xa0 Workshops were topical with a therapeutic focus and the students realized they were helping each other. Encouraging open and frank discussions while getting to the core. As a psychology student, we started a group with the focus of awareness of mental health and resilience (it started as a project) For students by students -showing support is beneficial to manage the inevitable ups and downs and the resources available. \xa0Mental wellness was brought into the light \u2013 which it\u2019s ok to talk about it. From there the students that were not really \u201cinterested\u201d took another look at the options available with a different perspective.', u'entity_id': 27824, u'annotation_id': 6067, u'tag_id': 419, u'entity_type': u'comment'}, {u'quote': u"After realising\xa0the community in which i grew up actually applied huge subconscious pressure on me through their projections of myself, through their expectations especially, and that so many of my life's actions were led by those thoughts in my head which were not really my thoughts. (i actually got married because everyone was telling me it's the right time and after some time it made sense...how crazy!).", u'entity_id': 26015, u'annotation_id': 6069, u'tag_id': 420, u'entity_type': u'comment'}, {u'quote': u"One time I sat in grand \xe9cart position for 48 hours so that I could join the pro gym team. Just to illustrate: I'm very disciplined and am applying to be Tina's new best friend. But the latest skill that I've been training is to do nothing. The saying goes that\xa0a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age,\xa0I'm not prepared to take the risk.\nWhen the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things.\nOne: when you look at discovery channel, animals don't spend all their time chasing. Most of it is just lying in the sun. No judgement necessary.\nTwo: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass?\nOn the question of how to\xa0help people to cope with expectations they can't and don't want to meet - \xa0I think it's something we each do for ourselves. Personally I draw a lot of inspiration from people who don't give too many fucks. So I try to be that person, too.", u'entity_id': 20396, u'annotation_id': 6068, u'tag_id': 420, u'entity_type': u'comment'}, {u'quote': u"One time I sat in grand \xe9cart position for 48 hours so that I could join the pro gym team. Just to illustrate: I'm very disciplined and am applying to be Tina's new best friend. But the latest skill that I've been training is to do nothing. The saying goes that\xa0a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age,\xa0I'm not prepared to take the risk.\nWhen the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things.\nOne: when you look at discovery channel, animals don't spend all their time chasing. Most of it is just lying in the sun. No judgement necessary.\nTwo: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass?\nOn the question of how to\xa0help people to cope with expectations they can't and don't want to meet - \xa0I think it's something we each do for ourselves. Personally I draw a lot of inspiration from people who don't give too many fucks. So I try to be that person, too.", u'entity_id': 20396, u'annotation_id': 6071, u'tag_id': 421, u'entity_type': u'comment'}, {u'quote': u"I can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case).\nAgainst this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does \u201ereal\u201c self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?\xa0\nI think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own.\nHow can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?", u'entity_id': 666, u'annotation_id': 6070, u'tag_id': 421, u'entity_type': u'post'}, {u'quote': u"I really enjoyed Loic's presentation. It was very practical: disable lifts so you can use the stairway to have social control while leaving the space open, out services at ground level, reuse office space as highly flexible living quarters...\nI think this could be a general purpose tool. A sufficiently large, flexible and central building can act like a coral reef from many life forms to use it and transform it. In 123 Rue Royale we see a community kitchen and\xa0a library, for example.\xa0\n@Yannick , is there a way that Loic himself could join this discussion? Would he be up for answering our comments?", u'entity_id': 15857, u'annotation_id': 6072, u'tag_id': 422, u'entity_type': u'comment'}, {u'quote': u'Is it about creating value in a corporate-type environment or in a peer production environment.', u'entity_id': 19801, u'annotation_id': 6073, u'tag_id': 423, u'entity_type': u'comment'}, {u'quote': u"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data,\xa0thanks\xa0to their size. Smaller companies can't do much with the\xa0data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be\xa0closer to a transaction (a gift, even).", u'entity_id': 11937, u'annotation_id': 6075, u'tag_id': 424, u'entity_type': u'comment'}, {u'quote': u"THE OPTIONS EXPRESSED IN THIS PAGE ARE ENGAGING ONLY THE AUTHOR. The Malagasy people seem to have lost the desire to resist standing up to defend their rights, even though they are being trampled on a daily basis. According to statistics, 92% of Malagasy lived below the poverty threshold but no one rose up. When social pressure is too much, the point of rupture is not far, and the accumulation of frustration and deprivation often results in bloody explosions. However, this can be avoided. Just put yourself to nonviolent civil resistance! Nowadays, the Malagasy people are tired of going down to the streets to claim their rights as citizens. Why make the strike if it is to have each time the same scenario: Teaser bombs, lost bullets and blood flowing, as was the case in 1972, 2002, or in 2009? Why manifesting because it is the politicians who benefit in the end? Today, people prefer to stay at home and rant about the social network instead of expressing their frustration in public and questioning their leaders. And yet, it is not the subjects of contestation which are wanting. Traffics of all kinds, corruption, bad governance, lack of accountability of elected officials, non-respect of laws, hamper development of the country. It is now essential that the Malagasy rediscover that power belongs to them and that they learn how to fight against injustice, without dilatory maneuvering of the politicians, and without violence. As Martin Luther King Jr pointed out, active nonviolence is not a method for cowards. On the contrary, it is a real resistance. It is the art of using non-violent power to achieve sociopolitical objectives, especially through symbolic protests. This practice was popularized from 1921 by exemplary personalities like Gandhi in India, by Nelson Mandela and Steve Biko in South Africa, or Martin Luther King Jr in his fight against segregation. The Malagasy also experimented with nonviolent civil resistance, for example through publications in satirical journals under colonization, but the practice gradually lost face to the rise of the military and police repression, but Also facing the weariness of the main concerned - the citizens. Contemporary movements such as Wake-up Madagascar are now trying to awaken citizens' consciences and to revive non-violent civil resistance. Short-lived symbolic actions that do not create crowds and are therefore not illegal are regularly organized to denounce the fact of society that make jasper. Expose empty plates to say that the Malagasy are hungry, to walk in the streets of Antananarivo to demand the ratification of a charter on democracy or to make the dead on the place of independence in the city center of the capital to denounce the words which undermine the country are for example, part of the non-violent civil resistance. It is precisely to spread this philosophy on the desire for change through non-violent actions that many projects such as LIANA or Learning Initiative Aiming at Non Violent Action which was initiated by Wake Up Madagascar, Liberty 32 and the WYLD program Women and Youth's League for Democracy with the support of the International Center for Non-Violent Conflict. Since the 70's during the 1st Republic in Madagascar, Malagasy people have been manipulate and influenced by politicians who wants a place on government by force. This article is about about my own personal opinion. You can add a comment, give suggestions or critics", u'entity_id': 813, u'annotation_id': 6076, u'tag_id': 426, u'entity_type': u'post'}, {u'quote': u'Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries.\xa0Communities will be taught how\xa0to make the\xa0filter and the purification drops - made from\xa0clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.\xa0\xa0\n\nInteresting read:\xa0http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet\n\n\n\nAccess to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world\u2019s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop.\n\nThe MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source.\n\nThe MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa.\n\nThe impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.', u'entity_id': 710, u'annotation_id': 12303, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'Cheap insulin is one of the\xa0reasons, but a precedent for more of this kind of research is also a reason, as this could decrease the cost of many more medicines. We can only guess, but I doubt the lesson Novartis would draw is "we need to do more open research"\xa0after they pick\xa0up half-finished open knowledge and successfully turn it into a product or profit. From releasing a somewhat finished protocol into the world, they might still not take that message away, but more citizen researchers might be inclined to, and keep the effort going.\xa0It becomes an optimization problem to balance\xa0short term and long term economic benefits, taking the strategy to get there into account.', u'entity_id': 12977, u'annotation_id': 6093, u'tag_id': 427, u'entity_type': u'comment'}, {u'quote': u'Ultimately, Mr. Zang\u2019s dream is to continue working to \u201cimprove life conditions\u201d by branching out into other areas of medical technology, envisioning specially adapted devices for echography and radiology.\nIn the Mbankomo clinic, the lack of these higher-end materials is evident. Surrounded by a tidy plot of well-brushed soil dotted with shade trees, the one-story clinic is austere. Patient consulting rooms are cooled by open windows, but little advanced machinery is on display. Mr. Zang says doctors at the facility are overwhelmed by the health needs of patients, which range from the mundane to the mortal. Connecting these clinics to better-resourced hospitals elsewhere via the mobile phone system is establishing a lifeline.\nMr. Zang hopes ultimately to manufacture the Cardiopad in Cameroon, and to help the country develop as a manufacturing center for lower-cost devices specifically tailored to low-resource environments and markets, like those in West Africa.\n\u201cThis will help lower the cost of medical exams and the cost of good health across the regions, in the villages,\u201d he says. \u201cThat\u2019s it, that\u2019s the dream that is smoldering in me.\u201d', u'entity_id': 555, u'annotation_id': 6092, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros \xa0our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It\u2019s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.', u'entity_id': 732, u'annotation_id': 6091, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world\u2019s biggest project aiming at removing cataract for the poorest:\xa0through\xa0a ten minute microsurgery with\xa0articial lens\xa0implantation.\nThe project is extraordinary and has been documented in media all over the world. My favorite aspects of it are:\n\n\nThe lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece.\n \n\nThe surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands;\n \n\nHis lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars)\n \n\nThe doctor himself has cured around 120.000 people\n \n\nBy funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others;\n \n\nIn Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150.\n \n\nThis simple idea turned out incredibly effective and is tested now in other countries.\nhttp://www.cureblindness.org/eye-on-the-world/press\nhttp://www.tilganga.org/', u'entity_id': 709, u'annotation_id': 6090, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'If all goes well, we hope our techniques will be available to people with diabetes, especially to help meet the needs of people in resource-poor and lower-income countries. However, it\u2019s hard to say at this point when we might be able to deliver a result useful for making a pharmaceutical-grade product. After the scientific work, which might take a few years, there will be the work of seeking business partnerships and going through more engineering work and the biosimilar approval process in the US. In other areas of the world, it may be simpler, but might also involve more unusual local political considerations. We\u2019re hoping that our work will inspire others to move in parallel alongside us and increase the chances that one group will succeed quickly, and there are some preliminary signs that this is happening, which could yield results sooner. But there\u2019s no doubt we\u2019re at the start of a very long and winding road.\nWe\u2019ve had the good fortune to have many experts in relevant fields reach out to advise us to smooth out our path, but many important questions remain, and the most important ones remain for us to find new answers. Scientists who are reading this \u2013 can we count on you to contribute your expertise in protein expression and purification? Organizers \u2013 can you share with us your vision for expanding these efforts into a movement with participation from parallel groups like ours around the world?', u'entity_id': 552, u'annotation_id': 6089, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'The cost of providing care in this labour-intensive business has increased significantly because of the introduction of the National Living Wage. The fees paid by local authorities on behalf of poorer residents no longer cover the cost of providing accommodation, food and staffing. Care homes make up the shortfall by charging higher fees to privately funded residents. Social care analyst William Laing tells Evan Davis that private payers subsidise publicly funded residents by, on average, \xa38000 per annum. But this is not an option in less affluent areas with a shortage of fee paying clients.', u'entity_id': 29077, u'annotation_id': 6088, u'tag_id': 427, u'entity_type': u'comment'}, {u'quote': u'The UK Government (and others) are looking at the issue as a major priority, given our aging population as the baby boom generation feed through and medical advances mean longer lives... Meeting the cost is a big debate here, especially in a time of "austerity" and widescale removal of central government funding.', u'entity_id': 27817, u'annotation_id': 6087, u'tag_id': 427, u'entity_type': u'comment'}, {u'quote': u"How can we build research into practice or at least make options much more accessible?\nThe question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community\nEven handbikes which are more popular can\u2019t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients.\nMy own group\u2019s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: \u201cThe FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living\u201d.\nWhy should you, me or anyone care about the future of research? you want to see your tax money spent well, don\u2019t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.", u'entity_id': 759, u'annotation_id': 6086, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users\u2019 houses (services?), all these are open questions that we will be working on for the next phase.', u'entity_id': 806, u'annotation_id': 6085, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'Open Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.', u'entity_id': 523, u'annotation_id': 6084, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'Doctors who have tested out the equipment have said it is as effective as stethoscopes by leading brands, despite being a fraction of the price.', u'entity_id': 10361, u'annotation_id': 6083, u'tag_id': 427, u'entity_type': u'comment'}, {u'quote': u'ctive low-cost collaboration process', u'entity_id': 720, u'annotation_id': 6082, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'Researcher Jos\xe9 G\xf3mez-M\xe1rquez whose big thoughts shapes Little Devices", the lab he directs at MIT-\xa0uses toys to make affordable medical devices.The Little Devices lab takes a DIY approach to designing and building tools, mainly for healthcare.\xa0 \xa0A plastic gun can be to create an alarm that alerts nurses when a patient\u2019s IV bag needs changing. And a box of Lego-like building blocks can be used to modify existing medical equipment in numerous ways. He creates devices that bridge the gap between absence of mechanical or electrical engineering or fundamentals of\xa0product design. Marquez talks about that toys can be the engineered piece or the mechanical bits and pieces that you can harvest and re-purpose.\xa0G\xf3mez-M\xe1rquez happens to have the backing of MIT, yet he is joined by a large and often-unrecognized population of DIYers who are practicing low-cost innovation. Historically, the public has looked to research and development labs at multinational corporations, universities and government labs\u200a\u2014\u200aand has grown accustomed to expensive, complicated devices used more often in elite hospitals than jungles or slums. Not surprisingly, those who make DIY medical devices encounter doubt and even derision constantly.\xa0Such attitudes are a problem, because the DIY tools dreamed up by backyard inventors, part-time tinkerers and academics like G\xf3mez-M\xe1rquez could improve \u2014 and even save \u2014 thousands of lives everywhere, not only in inner cities but\xa0in communities\xa0everywhere. We need to toss out our false assumptions about how, and where, new ideas come from \u2014 and recognize that innovation is everywhere.', u'entity_id': 707, u'annotation_id': 6081, u'tag_id': 427, u'entity_type': u'post'}, {u'quote': u'I think one some of\xa0challenges included are the cost of producing content as well as community management. @Augusto_Pirovano and @Matteo_Uguzzoni have a lot of experience in running urban games and I think they might have a lot of valuable experience to shar.', u'entity_id': 24959, u'annotation_id': 12304, u'tag_id': 2015, u'entity_type': u'comment'}, {u'quote': u'something which would be helpful is information about one time costs and running costs involved for participants? How do they compare to regular market rates for purchasing property in Milano?', u'entity_id': 29076, u'annotation_id': 6094, u'tag_id': 2015, u'entity_type': u'comment'}, {u'quote': u"I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.\xa0\ng", u'entity_id': 16180, u'annotation_id': 6095, u'tag_id': 429, u'entity_type': u'comment'}, {u'quote': u"I hope you will get the touring exhibition to have a european leg, and come through Lausanne! \xa0To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help!\n\nI left a comment with a few points this morning on the page with\xa0the documentary, but just to ask one more silly question: was it\xa0actually possible to do any fly-fishing on the Bagmati river?? \xa0(are there many fish to catch?? \xa0are they edible?) \xa0\n\nI did some flyfishing long ago in the great northwest and Montana, with great pleasure, but\xa0don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)...\n\nThanks again for sharing, and looking forward to further discussions!", u'entity_id': 21501, u'annotation_id': 12305, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u"Hi @Branislava. Here in Ireland last year we had a refferendum on gay marriage and it is now permitted by law. We too were dominated by church, but things do change. The third level education system is pretty good here. Recently Teach Solas resource centre got up and running. I wasn't involved myself apart from enjoying the parades and voting on the referendum. I don't think the journey was easy, but attitudes have changed greatly here. I hope that change can spread. I will ask them a bit more about their journey, maybe there are clues as to how? and where to start? One thing I remember is that the rainbow was used very strongly during campaigning.", u'entity_id': 11931, u'annotation_id': 6116, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 16245, u'annotation_id': 6115, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.", u'entity_id': 19608, u'annotation_id': 6114, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'There is no perfection of course, being in Europe allows me to discover the value of freedom, human value, accept differences, respect the personal space, working hard. To be precise I have to admit that the western civilization is the mirror which we see the deterioration of our situation through it, and the image we want to be closer to.', u'entity_id': 797, u'annotation_id': 6113, u'tag_id': 2016, u'entity_type': u'post'}, {u'quote': u'I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Din', u'entity_id': 24581, u'annotation_id': 6112, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'ab_channel=AmandaPousetteW\nsome similarities, no? I think the app doesnt really exist yet. but I think I could put you in touch with the person behind it all, Amanda...?!\nbest,', u'entity_id': 23928, u'annotation_id': 6111, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u"lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.\xa0\n\nProblem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!\xa0\n\nGood luck with the project and keep us up to", u'entity_id': 14420, u'annotation_id': 6110, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'Well done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs / traditions).\xa0\nIt may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages.\xa0I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety,\xa0hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds ("we have to comply with all these expensive regulations, whereas these guys just go gray economy").\xa0\nIn passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue\xa0capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.\xa0\nSo, I guess a first step towards\xa0A Taste of Home\xa0is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?', u'entity_id': 6539, u'annotation_id': 6109, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'"A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.', u'entity_id': 10361, u'annotation_id': 6108, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'One of the first things I noticed in Brussels is that a lot of people are living in the streets. Why are they living in the streets, don\u2019t they have families to take care of them? Where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen?', u'entity_id': 790, u'annotation_id': 6107, u'tag_id': 2016, u'entity_type': u'post'}, {u'quote': u"I am very moved by your story and I like the idea of including 'a wish' in every backpack so much. It reminds me of this project: https://www.facebook.com/weshallstandforlove/ of a fiend or me in Brussel: Dorothy Oger wrote the poem We shall stand for love in the aftermath of the Brussels terror attacks, and then the poem went viral and was translated in many many languages and now it is distributed for free on postcards with enough space to add a personal message;", u'entity_id': 20831, u'annotation_id': 6106, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'My grandmother came to mind and her story as a refugee child from the area of Pontos (Northern Turkey) in 1922. I just couldn\u2019t believe that something like that could happen again. Despite the fact that Greece, in the throes of its worst ever financial crisis, was straining to accommodate the inflow, most Greek islanders were doing their best. But still there was an ominous feeling in the air.', u'entity_id': 550, u'annotation_id': 6105, u'tag_id': 2016, u'entity_type': u'post'}, {u'quote': u'It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas.', u'entity_id': 19227, u'annotation_id': 6104, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'It seems that this is true in\xa0cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa)', u'entity_id': 19227, u'annotation_id': 6103, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'Maybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.', u'entity_id': 30885, u'annotation_id': 6102, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u"HI\xa0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!", u'entity_id': 30608, u'annotation_id': 6101, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u"Hi @Altamirula, nice to meet you. Can you expand on this point about cultural differences? \xa0\nHave you worked in Japan or experiencedvarious situations directly, or is is something you've read about?", u'entity_id': 29542, u'annotation_id': 6100, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst,\xa0is a sad one. I have found some solace and the begging of an understandment\xa0of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.', u'entity_id': 29064, u'annotation_id': 6099, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'now reading this and your paper, and thinking about our small discussion with laurel and (..) on fablabs, hackerspaces in different countries.', u'entity_id': 38834, u'annotation_id': 11844, u'tag_id': 2016, u'entity_type': u'comment'}, {u'quote': u'We have access to a Biosafety Level 2 lab in Ghent, yay!', u'entity_id': 8319, u'annotation_id': 6129, u'tag_id': 432, u'entity_type': u'comment'}, {u'quote': u'It is important that everybody here uses and delivers contents using the same tools and integrating to others within the bigger tasks.', u'entity_id': 864, u'annotation_id': 6128, u'tag_id': 432, u'entity_type': u'post'}, {u'quote': u'This is ust my own personal \xa0take, mind you. But me, I am too much of an economist not to see the efficiency gains of involving everyone, being super-flexible as to the form in which different people contribute. The Reef has a calming, burnout-preventing\xa0effect on us simply because being in one live-work place allows us to support each other in more ways. If I am exhausted, or pissed off, I can share whatever I do to flush the ad stuff out of my system: if I feel like cooking a meal I can offer you to cook for you too (or help me, if you feel like cooking too). If I feel lik going for \xa0run or a long walk I can invite you. It costs exactly nothing. But occasionally it will be just what you need: taking a break, regenerating a bit. We have already noticed how we are working fewer hours, and cutting out exactly the worktime where we are most stressed or tired \u2013 the worktime that does not produce anything. Compare the economics of this with those of bringing in a top-heavy professional system of counseling and treatment.', u'entity_id': 24900, u'annotation_id': 6127, u'tag_id': 432, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 834, u'annotation_id': 6126, u'tag_id': 432, u'entity_type': u'post'}, {u'quote': u'right..about the project. essentially we are a synergy hub for people who see that we need to strengthen the parallel reality..the " normal" - we work together\xa0to make these dreams come true... why do we protest? why do get angry at things? - ...and what good is that going to do when you know how the world is governed... that most of all we see is preplanned and we are just going along for the ride?// well... thats changing... people are waking up to the matrix... and yes... we are making a differnece..and yes we are turning back the tide... our quiet revolution is gaining momentum... and the establishment suddenly realise they wont have everything their own way anymore... we have a long - a very long way to go to raise the consiciousness....but we are doing it here...and with YOUR help... we can make this the EPI centre of that change...', u'entity_id': 20239, u'annotation_id': 6125, u'tag_id': 432, u'entity_type': u'comment'}, {u'quote': u'Some interesting facts from his paper:\n-social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands\n-7 % of houses totally empty\n-1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years\nFrom squatting to a participatory process -\xa0 a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don\'t have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.\xa0\xa0In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space!\nIt\'s an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123:\nProfit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their \'illegal\' status it isn\'t praised.\xa0Loic showed a detailed distribution of the types of spaces - at each floor you\'d have facilities, workshops, library + distribution of private and communal space. \xa0Important detail: Stairs are used instead of working elevators as a social control mechanism.\xa0\nLoic is trying to give more visibility to housing solutions - it\'s not easy, he says, and it\'s important to make good contact with the owner! "First you squat, then you talk" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail:\xa0loicdesiron@gmail.com', u'entity_id': 791, u'annotation_id': 6124, u'tag_id': 432, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 6123, u'tag_id': 432, u'entity_type': u'post'}, {u'quote': u'llow us to host people for extended periods of time as they work on their initiatives', u'entity_id': 30515, u'annotation_id': 6122, u'tag_id': 432, u'entity_type': u'comment'}, {u'quote': u'workshop, library, kitchen, and meeting space, we focus on efforts to self-organize, connect, create infrastructures, and develop greater individual and collective efficacy.', u'entity_id': 521, u'annotation_id': 6121, u'tag_id': 432, u'entity_type': u'post'}, {u'quote': u'hat\'s it - "identify microclimates\xa0and bottom up organising at the same as distilling policy implications". That is the direction I hope the theme will take us in!\nBigger arenas is another interesting dimension and I\'d hope that by identifying the enabling factors this will be like knowing what\xa0ingredients are needed no matter the size of the pot! Healthy growth for wider impact would be a goal.\nLooking forward to more shared insights on these topics!', u'entity_id': 21670, u'annotation_id': 6140, u'tag_id': 434, u'entity_type': u'comment'}, {u'quote': u"In your theme, I am most curious about how communities which nurture those enabling conditions can move on to leverage them into bigger arenas (Bernard's tales from Galway, or the incredible potential of @Woodbinehealth ), namely\xa0how care collectives can, in time and with due iterations or healthy growth,\xa0become institutions, if that word can be used..", u'entity_id': 19609, u'annotation_id': 6139, u'tag_id': 434, u'entity_type': u'comment'}, {u'quote': u'Conversations over the first month have helped to refine the theme from how I\u2019d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors\xa0that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots\xa0care initiatives. They will help to define the \u2018microclimates\u2019 that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the\xa0more disbursed ecology of care called for in response to\xa0growing health needs.', u'entity_id': 6462, u'annotation_id': 6138, u'tag_id': 434, u'entity_type': u'post'}, {u'quote': u'How do we create a culture that creates an environment, an ecology of care?', u'entity_id': 6415, u'annotation_id': 6137, u'tag_id': 434, u'entity_type': u'post'}, {u'quote': u'You could argument that everybody needs to do his part of preparation, and you can\u2019t only be the philosopher, but I lean to see a collective as an ecosystem where each other strengths are put up front and we organize ourselves around this.', u'entity_id': 785, u'annotation_id': 6136, u'tag_id': 434, u'entity_type': u'post'}, {u'quote': u'How do we create a culture that creates an environment, an ecology of care?', u'entity_id': 6415, u'annotation_id': 6135, u'tag_id': 433, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 6134, u'tag_id': 433, u'entity_type': u'post'}, {u'quote': u'It\u2019s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we\u2019ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said \u2018the work is the therapy\u2019 - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society?', u'entity_id': 6304, u'annotation_id': 6133, u'tag_id': 433, u'entity_type': u'post'}, {u'quote': u"I left Access Space just after we'd delivered an incredibly successful EU funded project: Sheffield Community Network. The project's overarching objective was to create jobs and social enterprises in the Sheffield City Region, and my particular role was to investigate the local employment potential of digital making technologies, give support to local enterprises that were investing in these processes, and help understand what positive local impacts could come out of engagement with 3D Print, Lasercutting, CNC, Digital Embriodery and so on.", u'entity_id': 14151, u'annotation_id': 6141, u'tag_id': 435, u'entity_type': u'comment'}, {u'quote': u'Teams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles.', u'entity_id': 38856, u'annotation_id': 11868, u'tag_id': 436, u'entity_type': u'post'}, {u'quote': u'I think the diybio code of ethics has transparency as its first principal\xa0for a very good reason - it gives a moral high ground that I think can override\xa0such questions of risk @WinniePoncelet, especially when you consider those\xa0options for cc, so open stays forever open and non-profit (thanks for pointing this out, @Alberto !)!\xa0\nTo me, the worst is when an idea is squashed because others decide to protect it for their own profit\xa0- but if it is all in the open to start, we should all benefit. \xa0\nIdealistic? \xa0perhaps...', u'entity_id': 16714, u'annotation_id': 6143, u'tag_id': 436, u'entity_type': u'comment'}, {u'quote': u'That said, you can take a "free" as opposed to "open" approach, and use nc or nc-sa licenses. This means people can reuse your data, but are prohibited from doing anything commercial with it; additionally, with sa (share alike) any new entity that incorporates your data inherits their license, so all "children" dataset stay noncommercial forever. The Creative Commons website has a handy wizard for choosing your preferrred license.\xa0These days, noncommercial licenses are\xa0not\xa0considered open licenses according to the Open Definition. With Creative Commons licenses, additional usage rights can always be negotiated with the rights holder. So, you can put out data with a nc license; if Novartis thinks they are so valuable and want to use them to develop a drug, they have to come to you and ask for a different license. At that point you decide what to do. Of course, it is difficult to monitor that they do not just syphon the data up and do whatever they want anyway, but hopefully the regulation is tight enough that they will consider not worth the risk of being caught out.', u'entity_id': 12671, u'annotation_id': 6142, u'tag_id': 436, u'entity_type': u'comment'}, {u'quote': u'It is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy_P. , while wondering how to support refugees,\xa0both have found that cooking is fundamental to care (one, two)', u'entity_id': 16858, u'annotation_id': 12306, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a "Common House" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It\'s quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That\'s partly due to economic factors.\nIt is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I\'d like to focus just on one of the challenges that I see here: how we engage with our own and each other\'s well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally.\nSharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.\nWe do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?\nThis brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on?\nThese are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other\'s resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.', u'entity_id': 830, u'annotation_id': 6170, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u'and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time.\xa0There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?', u'entity_id': 6850, u'annotation_id': 6169, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'@WinniePoncelet -: There are starting to be some cohousing projects in the UK, but these seem to be focused around shared living for those who do not yet need care (aimed at the over 50s, rather than the more senior). It seems people in such projects envisage sharing a carer as they get to the point of needing help. I\'m not sure of the viability of staying in such a place when serious dementia\xa0 or physical ailments start to occur; equally regular medication may require a qualified nurse and preventative care may require qualified staff on hand 24/7.\nAgain, I do think we need to start thinking about things in terms of the housing we are building. We can\'t just keep building homes for young families or "trendy" flats for young single people. We need to seriously consider social housing, mixed communities, purpose-built homes for the elderly, etc. Mixed housing should be mandatory for large-scale new build schemes, and not just a tiny number of "affordable flats" that the developer can negotiate to build in a completely different city (as is happening now in the UK!). Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn\'t really be interested in.\nI\'d listen to my previous post above on the actual issues of budgets, who pays for what when interacting with the powers-that-be, etc. What I can say from these initial cohousing projects is that they\'re a start, but don\'t yet seem to consider serious (legally covered) nursing care.\n(Are you aware of companies like McCarthy and Stone who build retirement homes, by the way? Perhaps schemes like that could be a way to progress the idea of cohousing and start people living together, with care facilities and good environments provided on top of their existing model.)\n(Final thought - have done some volunteer work in a day care centre for adults with learning difficulties before... Perhaps a similar model, with day facilities and night care facilities built separately, or being more intermingled than just nursing home residents gathered in their particular nursing homes 24/7, would be a good idea. Those who were more capable could use cooking facilities, make and create, etc. whilst in their "day environment," and other age groups or people living in the local area could also come and use such facilities / interact / assist? Again, funding would be an issue, especially in our current environment of service cuts and the loss of community centres and other such facilities. However, in the long run, I do think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS \xa32bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...)\nAgain - the major issue is the fact that we don\'t have joined up thinking, but increasing fragmentation in health and social care. Each individual element is asked to cut costs and reduce facilities, even if that results in massive costs elsewhere...\nI better stop at this point, or I\'ll get political again', u'entity_id': 29962, u'annotation_id': 6168, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'I have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?', u'entity_id': 28735, u'annotation_id': 6167, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'This is a beautiful story.\nIn an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms.\nIt seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they\u2019re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them\xa0tech-savvy skills like using email, social media and Skype.\xa0The bonding created from spending time together is incredibly important for everyone. Social relationships are key\xa0to human well-being and in the maintenance of health.\xa0The intergenerational living model started in 2012, with a few more nursing homes follow. \xa0Regular social interaction is necessary for mental health as well as social interaction.\nRead the complete story here: \xa0https://goo.gl/LYUpPP', u'entity_id': 809, u'annotation_id': 6166, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u"There are a number of\xa0interesting intergenerational care projects internationally - including:\xa0Present Perfect - USA & Fureai Kippu - Japan.\nThe Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.\xa0\nI understand there's an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.", u'entity_id': 20476, u'annotation_id': 6165, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 789, u'annotation_id': 6164, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u'My mother is now fairly old (she was born in 1937). Women in the family seem to have good genes, though, and she, her two sisters and some female cousins in their late 70s and early 80s are still quite formidable. They are also close to one another. So, my mum does have another option, which is to move in with her sisters. This is not as crazy as it might sound, because by pooling their forces they can hold out much longer than each one of them in isolation. Also, they would probably find this psychologically less disempowering than having to fall back on us, because they would help each other rather than being only on the receiving side.', u'entity_id': 26050, u'annotation_id': 6163, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u"Co-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?", u'entity_id': 13198, u'annotation_id': 6162, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 13152, u'annotation_id': 6161, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 6160, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u'ittle gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth.', u'entity_id': 703, u'annotation_id': 6159, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u'one big asnwer. i - we dont wanna say we are the best, we are the benchmakr. we failed a lot of times. becasue mainly co-living takes time and it is not a professional activity. this is not a community like organization that lives as a whole, it is the sum of families which tried to improve a better way of living in a light way. so no huge ambition was inside it, so i feel that everything that happen is like a miracle, even with all the troubles and limitation increased also by the economic crises that hit so many of us here.', u'entity_id': 24390, u'annotation_id': 6158, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'.but the chance here is get support of expereinces (good and bad) from families who knows what can mean to live like this without a religous/political/frienship\xa0previous shared background.\ncompanies or big institutions can probaly leverage on stronge assessts for the real estate side but', u'entity_id': 17693, u'annotation_id': 6157, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'I have known about this project for\xa0years (I have even visited!), and\xa0really like the way you guys seem to have adjusted and improved your ways of living together. My own co-living experiment is much smaller, and much younger than yours... there is a lot to learn here.', u'entity_id': 15499, u'annotation_id': 6156, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'Alberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and\xa0one of the units in each building is rented to the "community manager" tasked with working on social ties between people. Not sure about details, but it seems it\'s financed by Casa Depositi e Prestiti.\xa0Does your project have anything to do with it\xa0or better yet: do you see your project\xa0coming to influence social policies in Italy? It seems it\'s 8 years along the line and you guys seem to have great results to show as to what the future looks like.', u'entity_id': 8575, u'annotation_id': 6155, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'Since summer 2009, 30 families started living together in the first \u201cofficial\u201d co-housing in a periferic neighborhood in Milan, and probably of whole Italy. To my knowledge, the phenomenon has been often recorded by the Media (radio, tv, magazines and newspapers) and Polytechnic of Milan (Ph.D. and Master dissertations) as a first and original case. For some months and years, people liked to come and visit, check, make interviews about an experience that, in those years, sounded strongly innovative and now is consolidated. Some other co-living \u201cresidences\u201d (but not many) of this kind have been promoted and started in the north of Italy and not only in Milan.', u'entity_id': 743, u'annotation_id': 6154, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u'I met Sigried some years ago when I was working on a Parc project in Brussels and we had long discussions about the way she looks at the balance between public and private space. Between then and now she experimented around public \u2013 private space in Istambul, the Netherlands, Brussels and chose to practice her philosophy with her boyfriend, a product designer by living small (We\xa0Live\xa0Small\xa0is an on-going experiment developing tools to make living in\xa0small space possible.)', u'entity_id': 745, u'annotation_id': 6153, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u'Some case studies showcasing the benefits of shared living.', u'entity_id': 14141, u'annotation_id': 6152, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u"But in the long run, the deal is that you have to pull your weight. Maybe\xa0in the future we will have become so attached that we will change the deal. Who knows? Certainly this setup gives us a couple of shots before we have to give up completely. For example, we could sub-rent the extra room, and take the additional income from everyone's rent. Maybe the reduced privacy would be a sacrifice worth making to keep each other close, already now. Depends who you ask, I guess", u'entity_id': 10701, u'annotation_id': 6151, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'It seems like your group has found just the right balance between couple intimacy and social sharing of the space, which is something that would scare many of us grownups.', u'entity_id': 8933, u'annotation_id': 6150, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u'Four years ago, as we were planning our move to Brussels, Nadia and I decided to look for flatmates. Most of our friends and family members were rather puzzled: not many couples decide to share their apartment, though they can afford not to. We, however, thought it completely logical. Nadia is Swedish and I am Italian: at the time we lived in Strasbourg, France. That made us a migrant nuclear family, completely cut off from the network of emotional and material support that our friends and families of origin could offer. We were simply too isolated in our Strasbourg apartment, nice though it was; and we decided to try something different. So, we rented a much bigger apartment than we needed and asked the Internet for someone to share it with.\nFour years on, we think the experiment worked. For the last three years we have been living with Kasia and Pierre, a young couple of expatriates (Kasia is Polish, Pierre French). We really enjoy the co-habitation: the home feels more animated, and not a day goes by that we don\'t chat at least a little bit, over coffee or breakfast. We enjoy the big, airy living room overlooking the city. And, frankly, we appreciate that our lifestyle is really good value for money: thanks to the economies of scale implicit in family life, we pay a reasonable rent for a really nice space.\nAlong the way, we discovered that what makes our living together so enjoyable is that we are so different from each other. We come from four different countries; we are of different ages (Pierre, the youngest, is 19 years younger than me, the oldest); we have very different jobs (Kasia is a dental nurse, Pierre is the manager of a fashion boutique, whereas Nadia and I both belong to the "what is it that you do, again?" tribe); Nadia and I travel a lot, whereas Kasia and Pierre tend to be in town most of the time.\nThis works well on many levels. On a purely practical level, when we travel we love the thought that the home is not empty, and in the event of some misfortune (think plumbing failure) they can intervene; and I am sure they enjoy the privacy and the extra space. We pay for electricity, phone and the Internet, they pay for the cleaning services \u2013 less paperwork to do. We have an extra room, which normally serves as Nadia\'s and my office; but it doubles up as a guest room for the guests of all of us.\nBut there is more to co-habitation than practicality. Kasia and Pierre are lovely people: and, crucially, they are different people from Nadia and myself. We live out the city in different ways. We have different takes on almost everything, from French politics to Belgian beer. Comparing notes with them is always interesting, and I really value their insights and wisdom. Not that we spend all that much time together. I think our co-habitation unfolded in the right sequence: we started by a default attitude of rigorous mutual respect of each other\'s privacy and spaces. Then, over time, we grew closer, started to share the occasional meal, the occasional outing; we met each other\'s friends and families, lovely people to the last one. Guess what: we have built a sort of familial-like arrangement in a foreign city, among people who were originally complete strangers to one another.\nIt\'s working well. So well that, when a year ago our landlord announced that he was reclaiming his apartment and we would have to move out in the summer, we decided to stay together, and to look for a new place as a four-people household. Eventually, we got more ambitious and thought, what the hell, we might as well grow the family. If four people can live so well together in a larger apartment, how would it work with five, or six, or seven in an even larger one?\nIt works well, it turns out. We moved to a lovely loft, and were joined by a third couple (Belgian-Italian). Giovanni and Ilaria have since moved on for family reasons, but we enjoyed their company while we lived together. Their place has been claimed by Thomas, a young French engineer.\xa0\nWe do this for totally egoistic reasons: we enjoy each other\'s company, we save money, we live in style. At the same time, we are aware that we are working our way through solving a global problem. Planet Earth has 230 million international migrants; intra-EU migrants like us are 8 million. Many of Europe\'s young people simply cannot afford to hold their ground: their work, education paths, and love lives lead them to migrate. When they do, they, like us, lose their supporting networks, and it is really hard to rebuild them. Living together, especially in diversity \u2013 the older with the younger, the sporty with the mobility-challenged, the academic with the blue-collar worker \u2013 becomes a platform for sharing our different abilities, and being able, as a household, to solve many different problems, both emotional and practical.\nNone of this is new. You have heard it all before \u2013 at social innovation conferences and workshops, for example, and typically by people who live in middle-class nuclear families. But we have decided to walk this particular talk; it will probably not be the right choice for everyone, but it is the right choice Nadia, Kasia, Pierre and myself; and I strongly believe it might be right for many others. I encourage you to at least consider it for yourself: as more of us make this choice, the real estate market will respond, giving us more spaces suited to our particular lifestyle (in Brussels, for example, is very difficult to find large apartments with 3 or more bathrooms!).\xa0So, who wants to join?', u'entity_id': 648, u'annotation_id': 6149, u'tag_id': 2017, u'entity_type': u'post'}, {u'quote': u"This is not directly health care, but you can argue prevention is better than needing to cure. E.g. if people are living on the streets or extreme poverty where they can't keep warm and dry, and wash, of course they are more like to get sick and have many health problems.", u'entity_id': 10261, u'annotation_id': 6147, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u"What about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.", u'entity_id': 10261, u'annotation_id': 6146, u'tag_id': 2017, u'entity_type': u'comment'}, {u'quote': u"It's definitely worth reaching out to arts organisations to see how they respond to these types of ideas as well. I don't know about the mainland european models, but with the drastic reduction in state subsidy and the lack of increase in American style donor funding, UK based performing arts organisations have become much more interested in the ways they can repurpose buildings for theatre, creative industries and wider arts based practices.\n\nAn interesting case study would be Theatre Delicatessen in London:\n\n\n  \n    theatredelicatessen.co.uk\n  \n  \n    \n\nAbout - Theatre Delicatessen\n\nAbout - Theatre Delicatessen exists to support theatremakers and artists in the creation of their work.\n\n  \n  \n    \n    \n  \n  \n\n\n\nThey seem to only ever work in spaces that most others would move out of. Since they started they have had London bases in a disused factory in the West End (now a boutique hotel, i believe) then they moved into the recently abandoned Guardian newspaper head office, now they're moving across the river to an old Victorian library building.\n\nThey're less interested in what the space was before than what it can be in the future.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentart\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 21005, u'annotation_id': 12307, u'tag_id': 2018, u'entity_type': u'comment'}, {u'quote': u'Some interesting facts from his paper:\n-social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands\n-7 % of houses totally empty\n-1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years\nFrom squatting to a participatory process -\xa0 a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don\'t have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.\xa0\xa0In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space!\nIt\'s an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123:\nProfit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their \'illegal\' status it isn\'t praised.\xa0Loic showed a detailed distribution of the types of spaces - at each floor you\'d have facilities, workshops, library + distribution of private and communal space. \xa0Important detail: Stairs are used instead of working elevators as a social control mechanism.\xa0\nLoic is trying to give more visibility to housing solutions - it\'s not easy, he says, and it\'s important to make good contact with the owner! "First you squat, then you talk" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail:\xa0loicdesiron@gmail.com', u'entity_id': 791, u'annotation_id': 6174, u'tag_id': 2018, u'entity_type': u'post'}, {u'quote': u"I really enjoyed Loic's presentation. It was very practical: disable lifts so you can use the stairway to have social control while leaving the space open, out services at ground level, reuse office space as highly flexible living quarters...\nI think this could be a general purpose tool. A sufficiently large, flexible and central building can act like a coral reef from many life forms to use it and transform it. In 123 Rue Royale we see a community kitchen and\xa0a library, for example.\xa0\n@Yannick , is there a way that Loic himself could join this discussion? Would he be up for answering our comments?", u'entity_id': 15857, u'annotation_id': 6173, u'tag_id': 2018, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 6172, u'tag_id': 2018, u'entity_type': u'post'}, {u'quote': u'We learnt quickly that the ideas of how to use the space could never occur to someone who has never been in that exact position:', u'entity_id': 703, u'annotation_id': 6171, u'tag_id': 2018, u'entity_type': u'post'}, {u'quote': u'I found this article interesting:\n\n\n  \n    blogs.scientificamerican.com\n  \n  \n    \n\nThe Real Link Between Creativity and Mental Illness\n\n\u201cThere is only one difference between a madman and me. I am not mad.\u201d \xa0 \xa0 \xa0 \xa0 \xa0\u2014Salvador Dali The romantic notion that mental illness and creativity are linked is so prominent in the public consciousness...', u'entity_id': 12784, u'annotation_id': 12311, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'Hi @Noemi, @Pauline, @Alex_Levene,\n\nI found this article interesting:\n\n\n  \n    blogs.scientificamerican.com\n  \n  \n    \n\nThe Real Link Between Creativity and Mental Illness\n\n\u201cThere is only one difference between a madman and me. I am not mad.\u201d \xa0 \xa0 \xa0 \xa0 \xa0\u2014Salvador Dali The romantic notion that mental illness and creativity are linked is so prominent in the public consciousness...', u'entity_id': 12784, u'annotation_id': 12309, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'Hi @Noemi, @Pauline, @Alex_Levene,\n\nI found this article interesting:\n\n\n  \n    blogs.scientificamerican.com\n  \n  \n    \n\nThe Real Link Between Creativity and Mental Illness\n\n\u201cThere is only one difference between a madman and me. I am not mad.\u201d \xa0 \xa0 \xa0 \xa0 \xa0\u2014Salvador Dali The romantic notion that mental illness and creativity are linked is so prominent in the public consciousness...', u'entity_id': 12784, u'annotation_id': 12308, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.', u'entity_id': 6372, u'annotation_id': 6200, u'tag_id': 439, u'entity_type': u'post'}, {u'quote': u'What do you say if we explore openness and creative energy itself. We could explore this theme. How can we be more in alignment with ourselves/ our own creative energy? My experience is that when I\'m good in my energy I use a combination of being both intentful as well as open to whatever comes up (inside of me). So it\'s a combination of receptiveness and creative intent. So how can one cultivate the quality of being sensitive/ receptive and powerful/ intentful? Vulnerable as well as powerful. Loving as well as clear. Open as well as practical and creating physically (in whatever form excites one the most).\xa0\nI\'m excited about this theme. Would you like to explore this using the circle of openness? We could for instance pick a week at The Reef where we have circles every afternoon/ evening, while during the day everyone goes about their "normal"/ personal activities.\xa0\nWhat do you say? @Noemi, @Nadia, @Matthias, and others...?', u'entity_id': 26687, u'annotation_id': 6199, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'I am out of words to explain how amazing the idea is. Such creativeness! Each of the artwork is unique in their own way. Carrying hidden meanings and emotion. Treat to the eyes. Glad to know you came up with the idea. Wishing you good luc', u'entity_id': 8438, u'annotation_id': 6198, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'New Learning\n\n Creating Creative Learning (Spaces)', u'entity_id': 765, u'annotation_id': 6197, u'tag_id': 439, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 16092, u'annotation_id': 6196, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore.\xa0What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?', u'entity_id': 681, u'annotation_id': 6195, u'tag_id': 439, u'entity_type': u'post'}, {u'quote': u'I really enjoyed reading this article and I find familiar to me some\xa0of your influences (the Tumblr users, I\u2019ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don\u2019t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this \u2013 like I am).\nThanks for sharing this and good luck with it! What are the next "challanges" going to consist of? Let me know if you need a young girl\u2019s opinion. I\u2019m really interested into this subject and I would like to give some help.', u'entity_id': 14581, u'annotation_id': 6194, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 653, u'annotation_id': 6193, u'tag_id': 439, u'entity_type': u'post'}, {u'quote': u"I'd like to explicitly, out loud,\xa0acknowledge the super ideas and contributions people have been bringing to this conversation. What months ago started as a shy question by Pauline about the relationship between creativity and mental illness became slowly a rich\xa0discussion on artistic education, creative angst and vulnerability in various professions and particularly\xa0how personal attributes like introvertedness, autism, ambition, self-deceit, psychological resourcefullness at large\xa0influence the\xa0wellbeing of our professional self. What depth!", u'entity_id': 32290, u'annotation_id': 6192, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'The other item I fould almost universally helpful and reconiling is a list of cognitive biases. For me it very much drives home the point that the mind really is a very messy thing that is quite dismal at some tasks and quite impressive at others. And we are probably very lucky there is a good deal of variation between people.', u'entity_id': 32272, u'annotation_id': 6191, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"I am not someone who enjoys writing a whole lot, but let me share two items. The Dunning-Kruger effect probably explains some of this. It works indirectly though: Literacy is something that tends to draw an intelligent crowd. Those people tend to read material produced by other relatively intelligent people. If you decide you also have something to contribute, you will often feel like you'd better not be one of the worst of authors (even though for mere mortals there may not be a realistic way around that - as most people just need the practice). That means people who actually decide to write are a tiny minority and probably quite far from the average. So in short: writing does not produce (particularly much) anxiety, but it tends to draw an anxiety plagued crowd. When I read how fairly prolific writers approach the task (journalists on reddit, or academics for scientific proposals) I was shocked by the lack of rigor and decorum.", u'entity_id': 32272, u'annotation_id': 6190, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'As useful and valid this is, I think it explains things only in part. One idea that comes to mind is the notoriously anxiety-inducing profession of writing. There seems to be something intrinsic about the creative craft that makes people doubt themselves completely. The tyranny of the white page could be well found in the white canvas \u2026', u'entity_id': 32270, u'annotation_id': 6189, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"Tentative conclusion. Maybe it's not creativity that is stressful: it's the characteristics of winner-takes-it-all\xa0labor markets, including the one\xa0for\xa0artists. Implications: hard call. I fully appreciate that being creative in your spare time is limiting. But so is being poor, scared and stressed out. My own choice was relatively easy, given that I was obviously no artistic genius, and other things interested me just as much as music: I got the hell out of it after making it to midlevel (gold record in a secondary market such as Italy), but not to stardom", u'entity_id': 32197, u'annotation_id': 6188, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'First, there\u2019s the question of creativity and anxiety being intertwined, and how to identify the moment when this anxiety crosses over to a dangerous zone for the artist; also, if this link is a given, how would we go about trying to keep an artist in the safety zone without hindering the creative dimension. Going back to what has been noted so far, the idea of the artist as troubled soul is rooted in the romantic definition of the artist, which I think has long been overcome within contemporary art (and made room for other sources of angst). Nevertheless, apart from this dated, unhealthy perspective, there might be an actual connection between the artistic predisposition and emotional volatility. I haven\u2019t read any studies on this topic, though I suppose this is a strong area of research and only after making sense of the results we might be able to think of strategies for improvement. These might be seen as issues concerning the psychology of arts, which I\u2019m not at all familiar with.', u'entity_id': 32092, u'annotation_id': 6187, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'The theory @ybe has contributted is a very accurate example of the destructive narrative I was talking about in the first place.', u'entity_id': 31535, u'annotation_id': 6186, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"In general, I think of art and creativity as an expression of oneself, an expression of our inner world, our 'being' in the world, our being 'me'. Being authentic is by definition being different from others and thus coping with judgment,\xa0 the others , the outer world goes along with it.\nBut I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a 'symptom' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.\xa0 This disconnection is trauma, the residu of pain. In my vision many artists are trying to 'heal' themselves through their art - redefine themselves, trying to find a way to become 'whole' again - integrate pain and trauma. Artists are often 'self-healers', they are their own therapists.", u'entity_id': 31148, u'annotation_id': 6185, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"HI\xa0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!", u'entity_id': 30608, u'annotation_id': 6184, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"shouldn't this be precisely what art school is about? Providing the freedom to engage deeply with such practices, to experience the emotional fallout of an intense creative life before a job or a commercial project is hanging in the balance?\nCertainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice.\nPerhaps just being given permission to experience these things and making space to check in with each other and have collective discussion about what is coming up would go a long way to avoiding people feeling that processing emergent emotional material is somehow wrong or unbalanced.\nThis all also reminds me of how important it has been in recent years that people with 'non-ordinary' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the 'normals' about their own unique experiences:\nWhether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority.", u'entity_id': 29955, u'annotation_id': 6183, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"Interestingly,\xa0I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such\xa0personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can\xa0frame this question of different emotional responses even more specific to the art world, we can\xa0launch a challenge so that we can bring more domain insights. Let me know, I'd be interested.", u'entity_id': 29542, u'annotation_id': 6182, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst,\xa0is a sad one. I have found some solace and the begging of an understandment\xa0of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.', u'entity_id': 29064, u'annotation_id': 6181, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'Hi @Noemi @Pauline, is this challenge ongoing?', u'entity_id': 23625, u'annotation_id': 6180, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'"I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape."', u'entity_id': 17386, u'annotation_id': 6179, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"Pauline, your post made me think of my brother. At school he was artistic and a left hander, naturally talented at sport, and very sensitive (for example, he once walked into a house and sensed a ghost, which the owners later confirmed; another time, he avoided a major accident because he sensed something and changed his route on his motorbike). Life has been a bit of a struggle for him - he has pursued conventional success and it didn't suit his temperament and he complains about life being constant suffering (although sometimes it as if he seems to enjoy the suffering, otherwise why would he keep doing it?). He also drinks alcohol a lot - I have always asssumed this is because he finds life challenging, because he is so sensitive.\xa0 Having said this, he is still creative and charming and loveable. But he is hard to be with sometimes.\nI think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.", u'entity_id': 16370, u'annotation_id': 6178, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u"It's been quite difficult to work out exactly what my thoughts are on this subject. I've found some of the comments below to be helpful and insightful, but some to be problematic.\nThere is certainly a strong link through poetry and literature to this idea. I've recently been reading a lot of Thomas Mann and it's almost the entire structure on which his work is predicated. There seems to have been a sensibility that was propagrated in the late 1800s -early 1900s European intellectual/artisan culture around 'bohemianism' or latterly 'bourgouise'. I think in some senses it emerges out of a combination of Romanticism (in poetry and visual art) and it's opposite reaction,\xa0Realism (in painting and literature) and the beginnings of the sentimental nostalagia-tinged\xa0classical music of people like\xa0Verdi and the German/Austrians like Liszt, Mendelsohn.\xa0\nThe 'struggling artist' becomes a trope, a series of hooks onto which musicians, writers and painters can hang their emotional responses to the world. The struggles of the artist can therefore\xa0be equated to the struggles of the working, pastoral man and woman, who often during this period are the themes on which the artist work. c.f Beethoven's 6th, Robert\xa0Burn's Poetry, Victor Hugo. Which becomes an important connection between the (usually rich, educated and entitled) artists and the philosophy of people like Rosseau and Locke who want to improve the human condition for all.\xa0\nMore of a History of Art and Ideas response to the idea, and certainly not my final views on the subject, but i thought i'd add a bit more to this already in-depth post.\nAlso, worth having a quick read of this piece i found today:\xa0http://www.the-tls.co.uk/articles/public/literary-madness/", u'entity_id': 13417, u'annotation_id': 6177, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'@Pauline @Alex_Levene let me know if you came across scientific studies establishing that link? I couldnt find any..', u'entity_id': 12308, u'annotation_id': 6176, u'tag_id': 439, u'entity_type': u'comment'}, {u'quote': u'Are they something we should embrace, something we actually need to produce meaningful work? There seems to be a romanticized idea of the tragically ailed, mad genius, based on the stories of countless artists like van Gogh or Beethoven that produced some of their best work during periods of Depression or Hypomania. Joshua Walters proposes in his Ted Talk \u2018On being just crazy enough\u2019, that those suffering from mental conditions might just be more sensitive to the world than others and that we can use our \u2018skillness\u2019 to our advantage. Many scientific studies suggest in fact, that there is a link between creativity and mental illness. One theory is that those with strong creative inclination perceive the world with a heightened awareness and tend to be more reflective and ruminate in their thoughts.', u'entity_id': 680, u'annotation_id': 6175, u'tag_id': 439, u'entity_type': u'post'}, {u'quote': u"With Edgeryders we had always had\xa0some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It's somewhat natural, as long as the work is aligned with our mission\xa0and speaks for itself.", u'entity_id': 7536, u'annotation_id': 6201, u'tag_id': 440, u'entity_type': u'comment'}, {u'quote': u'Denmark, a social welfare utopia, takes a nasty turn on refugees', u'entity_id': 5545, u'annotation_id': 12314, u'tag_id': 2020, u'entity_type': u'post'}, {u'quote': u'"Podziemne Pa\u0144stwo Kobiet" is both a documentary and a collection of abortion stories from Polish women who had illegal abortions in the past two decades. Poland most likely is the only country in the world that had abortions legal by law (1956-1993) and changed it "backward".\xa0We ended up having one of the most restrictive laws in the world, and the legislators were smart, by\xa0avoiding criminalizing women (with whom society would sympathize) and focusing instead on everyone else who assists with abortions (the penalties are up to 8 years in prison), creating a system of fear and paranoia.\xa0\nThe first thing that strikes\xa0about abortion in Poland is the statistics - according to Polish Ministry of Health in 2013, there were 744 legal abortions and 718 of them due to the risk of birth defects. 3 of them due to rape and 23 due to the risk posed to women health. In 2015 there were 1044 legal abortions. For a country with 38 million inhabitants, these numbers seem just wrong. In Spain or UK, these numbers are 200 or 400 times higher. And it\'s estimated that illegal abortions every year account for between 80.000- 200.000 cases in Poland.\xa0\nSo, what kind of abortions are available in the underground and how do women access it?\nChirurgical abortions are one of the common ways. They\xa0usually happen in\xa0hidden spaces, often barely up to any standards, with basic equipment, sometimes only in the presence of doctor (women who come to get the abortion might end up assisting them). The price of an abortion is at least\xa02000 zl (500 euros), and it tends to go up with the standard. In some cases, when doctors are well connected, they can even perform them in hospitals, which would double the price. Many doctors who refused to perform a legal abortion are perfectly fine with doing it illegally after settling the price with their patients.\xa0\nConsidering that the minimal wage in Poland is 1850 zl, and the average is 4000 (yet many people struggle to get contracts, work on 3/4 of full time, or often work on irregular gigs earning even less than 1000 z\u0142 a month with no minimal wage per hour), the price is quite prohibitive and exclusive. Many women end up taking\xa0loans to pay off their abortions.\xa0\nNowadays, women contact pro-choice organizations to find out\xa0who can help them with abortion. Since the 90ties, press and internet advertisements were the ways to find\xa0doctors who\'d perform them. Such services would be named as "painless restoration of menstruation"\xa0- and involve either chirurgical help or access to drugs, highly overpriced. In many cases a friend or a relative knows who does it in your town. The fear and paranoia remain anyhow - women are asked to leave the clinic right after the procedure is done, regardless of their condition, in order not to bring suspicion. They\'re asked to park their cars far away from the place of appointment.\xa0\nSome of the informal groups specialize in organizing abortions abroad. Ciocia Basia, a group of volunteer activist, helps to organize legal abortions in Berlin. For a price of 290/390 euros, they arrange pharmacological and chirurgical abortions in clinics, help with translations and offer a couch for the women coming over. Another popular destination is Slovakia and Czech Republic - it\'s super easy to find websites in Poland of clinics in these countries that provide with professional and anonymous help. Prices are similar to those in Polish underground.\nAnd then you have the pharmacological abortion. There are two drugs containing\xa0misoprostol registered and available in Poland, one of which can be bought without the prescription. Women usually end up making up stories about stomach pain or rheumatic grandmothers to buy them. Sometimes both of them can be obtained from "under the counter", forums also advise to ask a man to help\xa0buy them. Misoprostol should be accompanied by mifepristone to increase effectiveness (the combination of both has 98% effectiveness, while only misoprostol alone is between 80-90%), but the latter drug is not registered in Poland. In this case organizations such as Women on Waves help to buy and ship\xa0them from other countries (they ask for donation of minimum of 70 euros, but they do support women in economic difficulties by providing them for free). It is well known that some of the doctors write prescriptions for these drugs (a pack of 12 costs 25 zl, but can be sold 10 or more times more expensive on the black market) and help women get access to them via advertisements. It\'s impossible to track as these drugs are not refunded by the state - therefore not registered anywhere.\xa0\nDue to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek\xa0abortions or just had one, share their stories\xa0and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It\'s recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save\xa0lives in some\xa0instances of home abortions.\xa0\nI am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.', u'entity_id': 793, u'annotation_id': 6204, u'tag_id': 2020, u'entity_type': u'post'}, {u'quote': u"It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.", u'entity_id': 10128, u'annotation_id': 6203, u'tag_id': 2020, u'entity_type': u'comment'}, {u'quote': u'The Danish city of Randers made it mandatory for public institutions, including cafeterias in kindergartens and day-care centers, to have pork dishes on their menus.\xa0\nStates in southern Germany can seize assets from refugees if they are worth more than 750 euros.\nSlovakia said that it will refuse entry to Muslim refugees, instead announcing that it would take in only Christians.', u'entity_id': 5545, u'annotation_id': 6202, u'tag_id': 2020, u'entity_type': u'post'}, {u'quote': u'think that is a common thread so far: we\'ve heard from\xa0welcoming refugees in Greece - a lot of which was ad hoc\xa0engineered so to speak, to p2p on-call\xa0systems which are more structured (and tech based - see BUOY\'s / "Call a friend, not the cops").\xa0\xa0I don\'t think @Aravella_Salonikidou will join us in Brussels, but maybe\xa0someone in her network is interested in connecting with Michael and his\xa0footcare mobile clinic? \xa0\n\nthe migrant crisis as a training ground for the crisis of the future -\xa0this reads\xa0so compelling, thank you Michael\xa0for coining it!\xa0\n\nI definitely see a session built as an experience/lesson sharing conversation between Michael and others who are doing great work on\xa0the ground, and at least someone with a high level overview that understands how the supoort system fails at the coordination and resource allocation level. @Alex_Levene also has been off the grid but hopefully resurfacing soon - Alex do you think someone in Help Refugees would want to join a conversation \xa0framed like this?', u'entity_id': 17141, u'annotation_id': 12319, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u"@Aravella_Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal.\xa0I wonder:\xa0with so many diverse community efforts,\xa0haven't there been any events\xa0where active\xa0people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?", u'entity_id': 14969, u'annotation_id': 12318, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u"Under the Architectures theme it would be useful to explore - personal resilience, effective\xa0ways to pass on skills (this is also something other theme conversations have picked up on - see here). Logistics/coordination may come in to the considerations about the role of citizen compared to role of the state and appropriate instruments such as policy. I'm not yet clear on this. Perhaps others have some useful perspectives?\xa0Your questions would also bring in the dimension of emergency -\xa0what does urgency bring\xa0to the lines of enquiry the Architectures theme have considered so far?", u'entity_id': 14386, u'annotation_id': 6244, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'Clearly you\'ll have amassed vital\xa0practical experience on your travels and it would be good to link up the learning with others in Edgeryders. I really like the notion of \'Emergency Mutual Aid\' and a very concrete practice of solidarity. I can see how it\'s useful to see "the migrant crisis as a training ground for the crisis of the future".', u'entity_id': 14386, u'annotation_id': 6243, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'bottom up crisis management.\nThrough the cold war we saw disaster situations managed through large scale civil defence. Even at the end of the cold war the mass migration that followed was handled with a military humanitarianism.\nWith the rise of global austerity since 2008, civil defense with the\xa0care sector in general has been get eroded. Cuts to public services reduce there capacity to respond.\noverall the public respond well to disasters,\xa0but new formations of disaster management are not without complications.\xa0\nhow can gaps be filled more effectively?\nhow can training\xa0be provided that meets unkown needs?\xa0\nhow do we prevent difficulty from becoming dispair?\nI have been doing research through actions. Seeing the migrant crisis as a training ground for the crisis of the future. Working with a mobile footcare clinic and trying to extract the best practice as we moved through the small camps of italy and down to serbia. dealing with medical issues and truck logics\xa0\nhow do we repilcate skilling up?\nhow do we deal with elite panic? ie large organisations in dissarray due to poor leadership.\nhow do we get people to thrive in high stress enviroments?\nmost of us can think of times when we have risen to the challenge of tough situations.\nwhat are the emotions and logistics behind\xa0that happening?', u'entity_id': 6470, u'annotation_id': 6242, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u's we continue to struggle in NYC, many changes have come about since we last wrote of the Woodbine Health Autonomy Center and our thoughts After Occupy. The chaos of the world seems to grow larger, pushing us to further investigate the materiality of autonomy. The growing migrant crisis in Europe, the rise of proto-fascist forces across the world, the election of Trump here in the US. The continual melting of glaciers. The mundanities of crushing debt, the anxiety of our culture, and the everyday loneliness of the city. And for us here at Woodbine, the loss of a dear friend and comrade who was traveling to support the indigenous resistance at Standing Rock.\nWe don\u2019t bring these up to merely add to the general devastation. But because they are our reality. They exist and to not acknowledge that is to cover ourselves with superficial banalities. The crises that continue to arise are merely symptoms of the disintegration of a way of being in the world that is becoming rapidly untenable. So when we think of care, we must take on the task of being a bridge to a new way of being.', u'entity_id': 6376, u'annotation_id': 6241, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u'This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.', u'entity_id': 20068, u'annotation_id': 6240, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'Well as very first I would like to graduate @ChristineSa\xa0you for your movement and idea at first of all. I have followed also a little the financial crisis in Greece through the news and the one and only thing that came across my mind is, that there are political conspiracies and reflectation of the crisis and the main reason is an earlier debt to the WEF and the Central Bank System', u'entity_id': 26041, u'annotation_id': 6239, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'The transition to such a system is not without obstacles, especially by virtue of the lack of political sense in the crisis-stricken country that is experiencing the deepest recession since World War II. Nevertheless, after\xa07 years of fighting the crisis, some cells inside the society start having a very clear idea about the pathway forward.', u'entity_id': 736, u'annotation_id': 6238, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u'One big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.', u'entity_id': 520, u'annotation_id': 6237, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?", u'entity_id': 23803, u'annotation_id': 6236, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20496, u'annotation_id': 6235, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'At the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I \'m trying to solve the problem with an idea called "smart boxes" (difficult to explain at the moment). I don\' t know if there\'s something out there that can help. This is why I\'m here...', u'entity_id': 17482, u'annotation_id': 6234, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'At the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I \'m trying to solve the problem with an idea called "smart boxes" (difficult to explain at the moment). I don\' t know if there\'s something out there that can help. This is why I\'m here...', u'entity_id': 17482, u'annotation_id': 6233, u'tag_id': 442, u'entity_type': u'comment'}, {u'quote': u'demand for professional care (health care, social care, daycare for children, care for elderly people\u2026) seems limitless, but the resources our economies allocate to it clearly are not.', u'entity_id': 5510, u'annotation_id': 6208, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u'The stories shared on the Edgeryders platform during 2011-12 illustrate the variety of ways in which young people find their access the labour market limited: not only through unemployment, but underemployment, casualisation and the prevalence of short-term contracts, the increasing cost of education in certain countries, the role of unpaid internships as a path to accessing certain industries. Where skills and qualifications have been acquired through formal education, many find themselves unable to secure work that makes use of these; where skills are acquired informally, the challenge is to represent these effectively to potential employers. Above all, the situation is defined by the interaction between two major processes: a long-term change in the structure of European labour markets, offering new entrants a poorer deal than had been the case for their parents\u2019 generation, has been exacerbated by the effects of the economic crisis that began in 2008.', u'entity_id': 493, u'annotation_id': 6207, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u'The figure of the \u2018graduate with no future\u2019,\xa0identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov\u2019s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason\u2019s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.', u'entity_id': 493, u'annotation_id': 6206, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u'The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?', u'entity_id': 493, u'annotation_id': 6205, u'tag_id': 442, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22106, u'annotation_id': 6246, u'tag_id': 443, u'entity_type': u'comment'}, {u'quote': u"I'd like to ask you about the ways in which you decide on what functionalities to add to the service? Both on receiving the feedback and requests from the users, but also what criteria do you apply when you pick some of these and make work?", u'entity_id': 20730, u'annotation_id': 6245, u'tag_id': 443, u'entity_type': u'comment'}, {u'quote': u'Crohns disease', u'entity_id': 35053, u'annotation_id': 12178, u'tag_id': 2381, u'entity_type': u'post'}, {u'quote': u'Hi Laura,\nI had managed to miss this as we were in deep preparation mode ahead of launching OpenCare. Are you up for trying something else? I have two suggestions to make\n1) Repost the material from the kickstarter campaign in your post above (if you like I can do it for you). This will make it more appealing for an Op3n fellowship\n2) I am just about to start pursuing a number of fundraising avenues including fellowships to support my own experimental work. We can collaborate on this if you like?', u'entity_id': 16500, u'annotation_id': 6256, u'tag_id': 444, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 6255, u'tag_id': 444, u'entity_type': u'post'}, {u'quote': u'I agree with you about the projects. Studying crowdfunding and charity there are some rules that help: people like "successful" initiative (the achievement of a specific goal that adress a specific need), to produce a somehow quantifiable contribution (for this reason the pledge should be done directly by the users) and to have some choices (this reinforce engagement part).\nI think also this model would help us to involve smaller organizations that could be more willing to support the promotion activity for fairbnb.', u'entity_id': 25049, u'annotation_id': 6254, u'tag_id': 444, u'entity_type': u'comment'}, {u'quote': u'We did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work.\nIt will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science/engineering\xa0work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next steps.', u'entity_id': 10742, u'annotation_id': 6253, u'tag_id': 444, u'entity_type': u'comment'}, {u'quote': u"So looking at your crowdfunding,\xa0people not only\xa0support, but actually\xa0fund scientific\xa0research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led?\nHow long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?", u'entity_id': 10213, u'annotation_id': 6252, u'tag_id': 444, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 6251, u'tag_id': 444, u'entity_type': u'post'}, {u'quote': u'Basically, I see the MVP as an Airbnb with an additional feature, an easy system to crowdfund projects on the platform (60% local 40% from wherever you want).\nThe fees will be more or less the same as Airbnb, 15%:\xa05% will be used to cover costs for the service, 10% will be allocated to projects directly\xa0by the travelers.', u'entity_id': 20627, u'annotation_id': 6250, u'tag_id': 444, u'entity_type': u'comment'}, {u'quote': u'About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.', u'entity_id': 523, u'annotation_id': 6249, u'tag_id': 444, u'entity_type': u'post'}, {u'quote': u'One last but very important point is that the funds for this ambitious project are being raised through an international campaign of crowdfunding in both euros and faircoins, which are being used to cover incomes of the refugees working in the project and their home rent. Being a cooperative initiative, this means that all the incomes are being equally distributed among the members, currently four in number, three men from Gambia, Egypt and Morocco, and a woman from Syria.', u'entity_id': 792, u'annotation_id': 6248, u'tag_id': 444, u'entity_type': u'post'}, {u'quote': u'All sorts of problems around crowd sourcing psychotherapy -\xa0equal relations and shared experience feels like a stronger emphasis: designing systems for\xa0"live", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\xa0to hold together around\xa0the varieties of experiences endured on this earth', u'entity_id': 18565, u'annotation_id': 6257, u'tag_id': 445, u'entity_type': u'comment'}, {u'quote': u'crowd-sourcing', u'entity_id': 34541, u'annotation_id': 12290, u'tag_id': 2501, u'entity_type': u'post'}, {u'quote': u'I am also very updated with the cryptocurrencies and that has proven us that where is the will, there is a way which means that everything on what or which you work hard on for it will be perceived. \xa0(Thumbs Up )', u'entity_id': 26041, u'annotation_id': 6258, u'tag_id': 446, u'entity_type': u'comment'}, {u'quote': u'Even if the potential benefits are high, the maker movement and biohacking are subjects of critics, since : practices are very Western oriented, local knowledge is not acknowledged (it\u2019s classified as superstition or culture) and values are often not put into practice as they should. My paper entitled \u201cBenefit and the hidden face of the maker movement: Thoughts on its appropriation in African context\u201d  was written from the critic perspective.', u'entity_id': 37182, u'annotation_id': 11771, u'tag_id': 447, u'entity_type': u'post'}, {u'quote': u'I am guessing the diveristy of the people in there is what keeps the space unique and going, you know what is the problem in most of the MENA region countries? is that at some point it was a mess and having diffent people in one room would only cause a lot of troubles... however now things are getting better, at least for Tunisia\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentbuilding diverse communities\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 38305, u'annotation_id': 11720, u'tag_id': 447, u'entity_type': u'comment'}, {u'quote': u'Good for you:\xa0If you\u2019re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you\u2019re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother. \xa0\n\nGood for everyone:\xa0Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.', u'entity_id': 867, u'annotation_id': 6275, u'tag_id': 447, u'entity_type': u'post'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 6274, u'tag_id': 447, u'entity_type': u'post'}, {u'quote': u'considerations:\n1 Based on my design experience, it is extremely hard to convince workers in the standard medical field (hospital,\xa0primary care physicians, etc...)\xa0to adopt a new kind of CRM software for multiple reasons: regulations issues due to privacy and national laws, obligations in using a specific software, affection to a well known software in contrast to the commitment in learning a new one,(even when the new one has better user experience...\xa0)', u'entity_id': 33771, u'annotation_id': 6273, u'tag_id': 447, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 6272, u'tag_id': 447, u'entity_type': u'post'}, {u'quote': u'ess onus seems to be placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the "invisibility" of the elderly, our fear of aging and death nowadays,\xa0marketing, the cult of the self and independence, or somesuch?', u'entity_id': 29077, u'annotation_id': 6271, u'tag_id': 447, u'entity_type': u'comment'}, {u'quote': u"we need societal change in this area. We seem to be more keen on housing our elderly relatives in care homes in the UK than say, South East Asia or Southern Europe. More interaction should be encouraged. (I've seen some families who barely see their parents once they've been moved in to a care home!)", u'entity_id': 27817, u'annotation_id': 6270, u'tag_id': 447, u'entity_type': u'comment'}, {u'quote': u'Cascoland was another project where she worked around public and private space. One of the tasks she had was to implement a sharing community inside a mixed neighbourhood. Like in Germany or Suisse they printed out little signs of objects anybody could put on their door to show they can lent this out. What was interesting was the conclusion: when explaining the concept to people with only Dutch roots they answered almost all the time: but I have nothing to share. For them it was a difficult step to share something of their belongings with their neighbours. When explaining the concept to people with Arab roots for example they didn\u2019t have a problem with sharing and where found of the idea, but had a problem with the fact the stickers would become an opportunity for other people to come inside. Inside their community they already had all the needed interaction and didn\u2019t want something external extra. A compromise could be the organization Tournevie that puts in disposal several tools for the community. A semi-private public space, as we understand it.', u'entity_id': 745, u'annotation_id': 6269, u'tag_id': 447, u'entity_type': u'post'}, {u'quote': u"Changing attitudes and culture takes more. As you've said organising and getting the conversation going at a community level is key, and getting famous/successful people to champion the cause would be a big help. And professional counselling service for individuals effected by these issues would help straight away, and also would be usefull along the journey as yet unknown challeges will surely appear.", u'entity_id': 20403, u'annotation_id': 6282, u'tag_id': 448, u'entity_type': u'comment'}, {u'quote': u"Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn't really be interested in.", u'entity_id': 29962, u'annotation_id': 6281, u'tag_id': 448, u'entity_type': u'comment'}, {u'quote': u'placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the "invisibility" of the elderly, our fear of aging and death nowadays,\xa0marketing, the cult of the self and independence, or somesuch?', u'entity_id': 29077, u'annotation_id': 6280, u'tag_id': 448, u'entity_type': u'comment'}, {u'quote': u'I do feel interaction with local community institutions would also help - retaining an existing GP, interacting with local schools and even nurseries, community gardens, parks and the like - though obviously this would depend on the mental and physical fitness of the person concerned. Fundamentally we still see care homes as a last resort, rather than a good place to be, and a large part of that is due to the lack of community interaction. I see some sheltered or assisted housing, where there are good communal facilities and assistance available if needed, but the person is otherwise living in their own flat or rooms... Such premises could be combined with a more typical care home, so there is a mix of people within the institution, though this could present issues handling medical needs.', u'entity_id': 27817, u'annotation_id': 6279, u'tag_id': 448, u'entity_type': u'comment'}, {u'quote': u'My own group\u2019s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: \u201cThe FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living\u201d.', u'entity_id': 759, u'annotation_id': 6278, u'tag_id': 448, u'entity_type': u'post'}, {u'quote': u"Thank you for sharing this very interesting experience.\n\nThe language is for sure the most powerful \u201cvehicle\u201d for integration and new ways of teaching might make it happen faster and deeper. Language also can instigate to newcomers a different view of themselves by providing new words, different expressions and more detached emotions.\n\nI wonder if you ever involved second generation Italians in your projects. I was just reading this article that made me think of many connections with your activities.\n\nI'm pretty sure also @Franca and @Medhin_Paolos may be interested.", u'entity_id': 9935, u'annotation_id': 12320, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'In my context, international partnership is very helpful, because our Government doesn\u2019t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner\u2026like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don\u2019t know our realities. They don\u2019t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.', u'entity_id': 37591, u'annotation_id': 11814, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'The motivation of health workers\xa0to deliver services in developing countries has been described as a critical factor in the success of health systems in implementing programmes. How the sociocultural context and affects the values, motivation and actions involved in sexual and reproductive health services is important for policy development and programme planning. With interest in male circumcision\xa0as an HIV prevention option is also necessary, this study explored the perceptions and motivations \xa0involved in sexual and reproductive health services, examining their implications for the possible future roll out of a national programme as well.', u'entity_id': 21127, u'annotation_id': 6314, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 6313, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust.\xa0And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that.', u'entity_id': 788, u'annotation_id': 6312, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.", u'entity_id': 19608, u'annotation_id': 6311, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"s today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums.\nWhithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.", u'entity_id': 33752, u'annotation_id': 6310, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'FACT 1: Bovisa is a meltin\u2019pot.\nPeople from many nationalities live in this neighborhood and many exotic shops can be found walking in the streets. Here, people can find at a short distance Chinese takaways, Italian pizzerias, Japanese all-you-can-eats and Indian restaurants (just to name a few).\nUnfortunately, the wide geographical network does not convert into effective connections.\nThat\u2019s why we asked ourselves:\nHow may we foster cultural exchange and engagement among different nationalities?', u'entity_id': 26067, u'annotation_id': 6309, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 6308, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'That\'s very informative, @jdossou80@yahoo.com, thanks.\xa0\nIt seems that in the USA and Europe there is a "middle generation": people that got on the Internet when it was still relatively new, let\'s say before 2006. Those people managed to see the tail end of the noncommercial Internet; and they remember what it means for using a website to to be "hard": slow dialup connections, textual interfaces, floppy disks with vintage browsers like Mosaic and Netscape. These people make good online collaborators; they go for content and community, and if they need to work a little harder to get it they will. This means they will forgive you websites like Edgeryders, that do not have the usability firepower of Facebook.\xa0\nYounger people here are harder to engage. They have never known anything but superfast Internet with integrated video, always available on their smartphones. They do not miss the free, noncommercial web of the early days, an\xa0\xa0have less patience for minor technical flaws.\xa0\nFrom what you say, Africa skipped the early phase of the Internet. Almost everyone who is online now got online in the last 5 years. They have never known anything but Facebook. It is the only game in town.', u'entity_id': 23162, u'annotation_id': 6307, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan\xa0Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve\xa0all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.", u'entity_id': 21489, u'annotation_id': 6306, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 6305, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'Alkasem: i have question to all of you: where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:\xa0\n\nthe core family concept has been broken down - after uni and growing up you have to carry yourself; so there is no glue which keeps family together\n\n\nin North Africa systems are weak -so there has always been a cultural support; whereas in the West the system is supposed to take care of everything\n\n\nHere (in the West) you are free, but alone!\n\n\n"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care (twitter link)', u'entity_id': 541, u'annotation_id': 6304, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 504, u'annotation_id': 6303, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 683, u'annotation_id': 6302, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'I think the work you are doing is great. I am an anthropologist who studies young people\'s practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm).\n\nIt strikes me that the language of "shit happens" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all.\n\nIt would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!', u'entity_id': 24338, u'annotation_id': 6301, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted).\xa0I think that might be a western thing, linked to what\xa0surfaced in the discussions with @alkasem23 about differences in', u'entity_id': 18779, u'annotation_id': 6300, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"Your distinction between authority and power is very useful. The point about different cultures reifying the system vs the person is also very relevant here - the problems around regulation and recognition of traditional acupuncture in the west can basically all be traced back to the original error of accepting the setting of the terms of debate around the technique 'acupuncture' rather than the practitioner.", u'entity_id': 18817, u'annotation_id': 6299, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever "has not moved on", is "affecting others", is "bothersome" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.', u'entity_id': 25204, u'annotation_id': 6298, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in\xa0Life and Death at the UnMonastery', u'entity_id': 8509, u'annotation_id': 6297, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'Perhaps this strength of intergenerational bond in Middle Eastern culture is down to having a more cohesive and\xa0consistant\xa0view of the world than we have in the West. Our horizons have expanded to include views about social and personal freedom that still struggle to gain ground in more conservative cultures.', u'entity_id': 27819, u'annotation_id': 6296, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'When I was younger living in San Francisco which has a very high Asian population, it seems like all of my asian friends had an elderly relative, usually a grandparent, living in their house. \xa0Every time I went over to this one friend\'s house in Chinatown, granny was always in the kitchen cutting up vegetables or something. \xa0I would see that and think, "that isn\'t gonna happen at my house." \xa0Neither generation wanted it.', u'entity_id': 21579, u'annotation_id': 6295, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"But I am sure the subtle and not so subtle differences will start a lot of thought processes about things you've until now taken for granted. In Marseille I see quite different approaches to dressing and style whith street scenes looking quite different depending on day of the week or time of day. I find it quite interesting but don't spend much time on this myself.", u'entity_id': 18613, u'annotation_id': 6294, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'me I think the issue is more simple , in the middle east we say we live in a big families because it is more warm , inherited consensus make it so easy , trust me , in Syria I never worried about what I,m gonna eat , who,s I,m gonna spend time with ( because of the agenda of duties for people , neighbours , family ) , I started to wonder about that only in europe', u'entity_id': 18095, u'annotation_id': 6293, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'..I really don,t know I was born and I raised up like this untill we don,t think about it , belive me when I say : I started to wonder about those things here in Europe', u'entity_id': 12087, u'annotation_id': 6292, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"How can we create a better health system if we need all kind of difficult systems to create the trust that isn\u2019t there really?\nWow, @Alkasem , this is a\xa0really interesting take on things. I agree 100% with you on this.\xa0\nI never lived in the Middle East, so I do not have your experience. But it doesn't look like the West lacks trust. All our societies run on trust; and normally such trust is rewarded, because we are rule-abiders: we stand in queues, show up for work and at school (resaonably)\xa0on time, and do not really cheat. Cheating is quite rare.\nSo: can you say more about the lack of trust you see? What is it that is done differently in Syria?", u'entity_id': 7704, u'annotation_id': 6291, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'[Curator\'s note] Alkasem was a doctor student in Syria, but had to flee the country for obvious reasons. He studied for four years at the university, but on arriving here he couldn\u2019t continue his studies because of his status of refugee in Europe. Still he came to the workshop in Brussels and we are all really thankful for his disruptive thinking and propositions that helped us think out of the box and see our Western society from another perspective.\nAbout alternatives to our healthcare system: \nIn Syria we have an \u2018islamic solidarity\u2019 in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven\u2019t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship. \xa0We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.\nI want to see the whole of society as one body, but here everybody lives in his box, I call this\xa0"boxpeople". You live together but you don\u2019t really live together. You are online, but not connected, we have to discuss, to see each other more. This is my new society, so i want to care as much about this now then how I cared about my society in Syria.\n\xa0For exemple the old people are separated from the rest of the adults, they don\u2019t have a connection. Why do you do that? We don\u2019t talk about generational society, we don\u2019t attach value to\xa0the older people\xa0here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity\nAbout people sleeping in the streets:\nOne of the first things I noticed in Brussels is that a lot of people are living in the streets. Why are they living in the streets, don\u2019t they have families to take care of them? Where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen?\nSome of the participants responded later on:\xa0\n\nthe core family concept has been broken down - after uni and growing up you have to support yourself; so there is no glue which keeps family together\n\n\nin North Africa systems are weak - so there has always been a cultural support; whereas in the West the system is supposed to take care of everything\n\n\n"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care\xa0(twitter link)\n\nAbout trust\nEverything moves around friendship. I have the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust.\xa0And without trust no skill can be shared. How can we create a better health system if we need all kind of difficult systems to create the trust that isn\u2019t there really.\nIn less then one day, Alkasem showed us that the things we find sometimes really obvious aren\u2019t at all for everybody. He inpacted a lot of the discussions with his point of views and made it obvious that sometimes we are still a bit too etnocentric about the way we want to design solutions. Having completly different cultural heritages at the table makes a discussions so much richer.', u'entity_id': 790, u'annotation_id': 6290, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'Maybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.', u'entity_id': 30885, u'annotation_id': 6289, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"HI\xa0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!", u'entity_id': 30608, u'annotation_id': 6288, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"Hi @Altamirula, nice to meet you. Can you expand on this point about cultural differences? \xa0\nHave you worked in Japan or experiencedvarious situations directly, or is is something you've read about?", u'entity_id': 29542, u'annotation_id': 6287, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst,\xa0is a sad one. I have found some solace and the begging of an understandment\xa0of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.', u'entity_id': 29064, u'annotation_id': 6286, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"Dear @ybe - it's great to hear of your initiative!\xa0Following up on Noemi's suggestion - I agree that local organizations/groups/individuals on your trail could also be insightful in identifying groups in need of your services, offer insights on any cultural differences, or\xa0support you in a number of other ways (including in overcoming language barriers if existant). I was wondering if you have considered mapping your desired/planned route to facilitate connecting with local groups/individuals before you arrive - maybe a very basic online map? I think it could facilitate reaching out to people on the route and could have potential as a planning tool.", u'entity_id': 21964, u'annotation_id': 6285, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u"@ybe I'm happy to meet you, my name is Noemi and while I haven't dealt with the issue at all, maybe this is silly to ask: but\xa0I'm wondering if people in different places have own preferences to express themselves, or if language can be an obstacle?", u'entity_id': 20332, u'annotation_id': 6284, u'tag_id': 449, u'entity_type': u'comment'}, {u'quote': u'Cascoland was another project where she worked around public and private space. One of the tasks she had was to implement a sharing community inside a mixed neighbourhood. Like in Germany or Suisse they printed out little signs of objects anybody could put on their door to show they can lent this out. What was interesting was the conclusion: when explaining the concept to people with only Dutch roots they answered almost all the time: but I have nothing to share. For them it was a difficult step to share something of their belongings with their neighbours. When explaining the concept to people with Arab roots for example they didn\u2019t have a problem with sharing and where found of the idea, but had a problem with the fact the stickers would become an opportunity for other people to come inside. Inside their community they already had all the needed interaction and didn\u2019t want something external extra. A compromise could be the organization Tournevie that puts in disposal several tools for the community. A semi-private public space, as we understand it.', u'entity_id': 745, u'annotation_id': 6283, u'tag_id': 449, u'entity_type': u'post'}, {u'quote': u'what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river\u2019s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu\u2019s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/).', u'entity_id': 576, u'annotation_id': 6318, u'tag_id': 450, u'entity_type': u'post'}, {u'quote': u"I can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco\xa0where people gather in parks in the evenings and bring their tagine out to cook\xa0and mingle while enjoying the cool breeze from the Atlas mountains..", u'entity_id': 15186, u'annotation_id': 6317, u'tag_id': 450, u'entity_type': u'comment'}, {u'quote': u"Hey @Noemi, this is just something cultural that people have always been doing in\xa0Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is\xa0not allowed to cook in public parks any more even though they use\xa0a traditional\xa0portable clay pot for coal/making fire and there is no hasard in cooking open air in such way...\nWhen people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available", u'entity_id': 18382, u'annotation_id': 6316, u'tag_id': 450, u'entity_type': u'comment'}, {u'quote': u"Yes the Bagmati\xa0does have its issues but it's cultural importance is intriguing. The residents of Kathmandu\xa0have been cleaning up the banks of the river for the past 150 Saturdays\xa0and they have not missed a single Saturday yet even during the earthquake which is \xa0it is remarkable. Yes I think that the arts has a\xa0way of bringing together a lot of different groups and using aesthetics is a way to introduce complicated issues \xa0in a accessible manner.", u'entity_id': 14306, u'annotation_id': 6315, u'tag_id': 450, u'entity_type': u'comment'}, {u'quote': u'For now I continue on my mission to test community- sensitive and -relevant means of expression and trying to find ways of using those tried and tested methods as communication tools. After all, what we want are healthier , expressive and inclusive communities whether you choose to define that territorially or otherwise. Only together can we progress...', u'entity_id': 33730, u'annotation_id': 6319, u'tag_id': 451, u'entity_type': u'post'}, {u'quote': u'Ashram Kitchen', u'entity_id': 39334, u'annotation_id': 11642, u'tag_id': 452, u'entity_type': u'comment'}, {u'quote': u'Simon makes another interesting point - that these kind of skills are \u201cnot learned, [rather] picked up from living in a culture where they are norms, through a process you could call \u2018enculturation\u2019.\u201d', u'entity_id': 6462, u'annotation_id': 6321, u'tag_id': 452, u'entity_type': u'post'}, {u'quote': u'I clicked on the Theater of the Oppressed link and saw the point about cultural humility!\n@Shajara \xa0Now that is a really a good idea!!', u'entity_id': 33812, u'annotation_id': 6320, u'tag_id': 452, u'entity_type': u'comment'}, {u'quote': u"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc.\n\n@WinniePoncelet, it could be very good if you could elaborate on why you don\u2019t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get?\n\nYou have a good point,@WinniePoncelet, \xa0we could imagine raising funds to have a FES bike that people could try locally.\n\nI\u2019ve learned two things recruiting wheelchair users as testdrivers\n\n\nThere is a perception that it may be physically harmful\nPeople are afraid of traffic. There is a perception that there are nowhere to use the a Handbike\n\n\nAs for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.)\n\nAs for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling). \xa0@Francesco Maria ZAVA\xa0and others we could\xa0work on this\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 23387, u'annotation_id': 12321, u'tag_id': 2023, u'entity_type': u'comment'}, {u'quote': u'Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive\u2026.unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.', u'entity_id': 779, u'annotation_id': 6329, u'tag_id': 2023, u'entity_type': u'post'}, {u'quote': u"Hi @Alberto, you are very right.. However I have been cycling around milano on tandem with a trailer (thats a long veicule) and two kids. I've learned that the trick is to know where to go\xa0and its a challenge (https://edgeryders.eu/en/can-we-hack-or-tweak-maps-to-help-where-infrastructure-fails-for-soft) we have to work on after our kick off event :http://wehandu.it/it/fesbici/", u'entity_id': 27818, u'annotation_id': 6328, u'tag_id': 2023, u'entity_type': u'comment'}, {u'quote': u'Traffic is\xa0scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition \u2013 it is unusually flat for Italy, and that helps.\xa0When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness.\xa0Bicycle lanes where almost absent. As a consequence, only "extreme cycling" happened: young, fit\xa0men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this:\n\nBut over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles\xa0a day.\xa0Eventually, the city council started to take\xa0cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.\xa0\nWhat this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of\xa0early adopters that pave the way (literally, in this case) for everyone else.', u'entity_id': 26048, u'annotation_id': 6327, u'tag_id': 2023, u'entity_type': u'comment'}, {u'quote': u'The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I\u2019m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling?', u'entity_id': 759, u'annotation_id': 6326, u'tag_id': 2023, u'entity_type': u'post'}, {u'quote': u"Thanks for sharing this @Rune. I cannot begin to imagine how good it must feel for someone with paralyzed legs to bike independently\xa0again.\xa0We have\xa0good biking infrastructure in my city/Belgium in general, but I rarely see handbikes actually.\xa0\nAbout where to try\xa0the FES bikes: are the bikes\xa0customized to the user? Or could you imagine a network of users who are up for letting others test their bike from time to time. On top of that people meet and connect, they are more involved and it's not a huge cost for anyone.", u'entity_id': 19646, u'annotation_id': 6325, u'tag_id': 2023, u'entity_type': u'comment'}, {u'quote': u"Alessandro,\xa0I'm also interested in approaches where the data entry\xa0becomes organic, integrated in your routine, almost happening in the\xa0background. i.e. a wonderful UI UX.\xa0\nI will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I\u2019ll definitely like to deliver a smooth user experience.", u'entity_id': 24217, u'annotation_id': 6331, u'tag_id': 455, u'entity_type': u'comment'}, {u'quote': u"A cooperative model where citizens with various skills can work together on realizing devices for use in everyday life, that will improve or maintain individual functional capabilities. This model will explore ways to transfer research results directly to users (target participants). New and existing ideas will be challenged and transformed into methods and assistive technology for activities of daily living. Initial focus will be to demonstrate how the challenges of mobility can be resolved by helping people's creativity in a social environment. One challenges that people often meet is the need for adaptation of tools to be able to perform day-to-day tasks as .abilities change, In the WeHandU laboratory people will be able (and helped) to implement such changes.", u'entity_id': 720, u'annotation_id': 6330, u'tag_id': 455, u'entity_type': u'post'}, {u'quote': u'@marcomanca, I do agree to some extent. However we need data. Do you have ideas of the costs & times that you can provide?', u'entity_id': 17949, u'annotation_id': 6334, u'tag_id': 456, u'entity_type': u'comment'}, {u'quote': u'There is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the\xa0number of emergencies and helping save a lot of money. It sounds very much like Bookchin\xa0to me: small communities tackling local problems, using\xa0collectives\xa0procedures and new technology.', u'entity_id': 26031, u'annotation_id': 6362, u'tag_id': 463, u'entity_type': u'comment'}, {u'quote': u'The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.', u'entity_id': 33817, u'annotation_id': 6338, u'tag_id': 458, u'entity_type': u'comment'}, {u'quote': u'The missing digitalization of the gathered health data and the consequent discontinuity of the healing process.', u'entity_id': 33817, u'annotation_id': 6337, u'tag_id': 458, u'entity_type': u'comment'}, {u'quote': u'Another member of the community who might be interested in this is @Eireann_Leverett who does information security and has experience with tech-related privacy/security issues which is a concern. And not just for high risk users e.g. activists...', u'entity_id': 8632, u'annotation_id': 12326, u'tag_id': 2024, u'entity_type': u'comment'}, {u'quote': u'Hackers \u2018could take over your dildo and make it go berserk\u2019, expert warns\n\nHe actually \u2018took over\u2019 a big, plastic penis live on stage', u'entity_id': 16891, u'annotation_id': 12325, u'tag_id': 2024, u'entity_type': u'comment'}, {u'quote': u'Information security professionals may not be prepared for IoT after all\n\n"Even with awareness of vulnerable devices at an all time high, information security professionals are not equipped to address the growing threats."\n\n  \n  \n    \n    \n  \n  \n\n\n\nAs you might expect, the IoT is fraught with security holes and a growing population of users who are rather unconcerned about it - mainly because they don\'t know and don\'t think about it enough. \xa0But do you want someone hacking into your Google Car? \xa0This article points out that many IoT devices and projects don\'t even know all that connect to them.', u'entity_id': 5469, u'annotation_id': 12323, u'tag_id': 2024, u'entity_type': u'post'}, {u'quote': u"Thanks Natalia and Eireann for reporting on this. I had read Marie's story a while ago on the internet and was impressed by the humility with which she had approached medical security. After all, she rightly stated that the benefits of having the pacemaker far\xa0outweigh the risk - which is why probably many patients are looking away or de-prioritizing this.\nI'm also reminded of @Rune's story where an upgraded\xa0medical care also needs an alliance between\xa0patients/consumers and researchers\xa0(he's arguing for more\xa0system availability for\xa0cheap, effective medical tech).", u'entity_id': 16928, u'annotation_id': 6345, u'tag_id': 2024, u'entity_type': u'comment'}, {u'quote': u"I've met \xc9ireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content.\nThen I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff.\n\xc9ireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs\xa0on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann\u2019s years of assessing devices for security holes, they wouldn\u2019t normally be \u201callowed\u201d to investigate the security of such devices.\nThis implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable.\nI suggest you watch this great video from 32C3, where Marie and \xc9ireann tell about their journey.\nObviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it.\nBut that's not all - \xc9ireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is \u201cSafer. Sooner. Together.\u201d\nHe contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\nFinally, \xc9ireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.", u'entity_id': 712, u'annotation_id': 6344, u'tag_id': 2024, u'entity_type': u'post'}, {u'quote': u'nd shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS).', u'entity_id': 735, u'annotation_id': 6343, u'tag_id': 2024, u'entity_type': u'post'}, {u'quote': u"I'm more worried about people hacking into my computer. My computer is part of me / my brain.\xa0OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.\nI don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable.\nSo my point is: This IoT security panic is being blown out of proportion. It's nothing new.\nSure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.", u'entity_id': 10467, u'annotation_id': 6340, u'tag_id': 2024, u'entity_type': u'comment'}, {u'quote': u"I'm more worried about people hacking into my computer. My computer is part of me / my brain.\xa0OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.\nI don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable.\nSo my point is: This IoT security panic is being blown out of proportion. It's nothing new.\nSure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.", u'entity_id': 10467, u'annotation_id': 6339, u'tag_id': 2024, u'entity_type': u'comment'}, {u'quote': u'them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users.', u'entity_id': 837, u'annotation_id': 6346, u'tag_id': 460, u'entity_type': u'post'}, {u'quote': u'The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.', u'entity_id': 33817, u'annotation_id': 6348, u'tag_id': 461, u'entity_type': u'comment'}, {u'quote': u'At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove\u2019s collected data through a graphical interface and cartesian charts.', u'entity_id': 33751, u'annotation_id': 6347, u'tag_id': 461, u'entity_type': u'post'}, {u'quote': u'reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance.\nReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.', u'entity_id': 33751, u'annotation_id': 6361, u'tag_id': 462, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 20341, u'annotation_id': 6360, u'tag_id': 462, u'entity_type': u'comment'}, {u'quote': u'Your idea of testing different ways of presenting data in communities sounds really interesting! Your project funded by the Making All Voices Initiative sounds amazing. Do you have any material to share with us about this? Same holds for the photovoice booklet you mentioned. Would love to learn from your rich experience.', u'entity_id': 33825, u'annotation_id': 6359, u'tag_id': 462, u'entity_type': u'comment'}, {u'quote': u'assisted me in relaying scientific knowledge to other audiences. I\'ve been actively involved in collaboratively designing Events to this purpose, which not only provides knowledge in "digestable" means to community members, but are key for Scientists to observe as well. Each event has been learning for me, and I\'m now testing the efficacy of presenting data in a different manner in communities, i.e. arts, or fun interactive events within communities in a pop-up fa', u'entity_id': 33824, u'annotation_id': 6358, u'tag_id': 462, u'entity_type': u'comment'}, {u'quote': u'I re-read the paper and made myself a map of the story with Tulip, extracting names of persons and/or organizations by hand. The grouped nodes with outer/inner labels is one of the marvelous things you can do with the software', u'entity_id': 23566, u'annotation_id': 6357, u'tag_id': 462, u'entity_type': u'comment'}, {u'quote': u'You seem to have stumbled into networks as a storytelling technique. Of course all visualisations tell stories, but in OpenCare we are telling stories of collaboration and interconnectedness, so networks work particularly well.\xa0Is it worth doing some work on, trying to come up with self-explanatory visualizations?', u'entity_id': 17129, u'annotation_id': 6356, u'tag_id': 462, u'entity_type': u'comment'}, {u'quote': u'We are working on the outcomes to be shown, for example visualizing the evolution of lung capacity, effects of doing therapy or not, etc.', u'entity_id': 26038, u'annotation_id': 6355, u'tag_id': 462, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11777, u'annotation_id': 6366, u'tag_id': 464, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 6365, u'tag_id': 464, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 838, u'annotation_id': 6364, u'tag_id': 464, u'entity_type': u'post'}, {u'quote': u'Main aspect of this project is to create an environment that deaf people can open up to the world through T-shirts...', u'entity_id': 545, u'annotation_id': 6363, u'tag_id': 464, u'entity_type': u'post'}, {u'quote': u'I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever "has not moved on", is "affecting others", is "bothersome" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.', u'entity_id': 25204, u'annotation_id': 6372, u'tag_id': 465, u'entity_type': u'comment'}, {u'quote': u'Thanks for this. I suffered a loss many years ago and couldn\'t understand the reaction of the people around me. It was if they allowed me a month or two to "get over it" and then I was expected to move on. Some good friends couldn\'t bring themselves to mention the dead person\'s name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone\'s relief it seemed. I remember crying in front of my brother a few months later and he didn\'t know how to cope. But he hadn\'t been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.', u'entity_id': 24145, u'annotation_id': 6371, u'tag_id': 465, u'entity_type': u'comment'}, {u'quote': u'I am definitely not young anymore, and I guess I am still moving within the paradigm of "mourn, then move on". Actually, my understanding is that you mourn exactly to\xa0make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.\nThis is why the famous Black Mirror episode about digital afterlife was so disturbing. The protagonist was flailing about, unable to move on, as the AI occasionally manages to make a convincing simulation of her dead husband. Convincing, that is, to her: we, the spectators, are not fooled. We shake\xa0our heads as she holds on to the simulacrum. We see her doing almost all the cognitive work to build the illusion of an ongoing relationship.\xa0\nThis is a well known bug in our cognition: we antropomorphize. In computer science, this was first exploited by the famous ELIZA program in 1966. psychological research around it established that\xa0\n"[...]\xa0even if fully aware that they are talking to a simple computer program, people will nonetheless treat it as if it were a real, thinking being that cared about their problems." \u2013 source\nI had a friend who was very active on social media \u2013 in fact one of its early\xa0users, and author of a 2003 book thereabout. When he passed, I unfollowed his accounts. The last thing I want is a digital ghost haunting my feeds.', u'entity_id': 20691, u'annotation_id': 6370, u'tag_id': 465, u'entity_type': u'comment'}, {u'quote': u"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the\xa0digital\xa0platform of social media (they pay less attention to the\xa0public\xa0nature of some of these platforms).\nMemorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.", u'entity_id': 11904, u'annotation_id': 6369, u'tag_id': 465, u'entity_type': u'comment'}, {u'quote': u'Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn\'t go to the funeral: it still feels surreal, like she might show up at any time, and the "active" facebook account isn\'t helping.\nI am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else\'s death\xa0feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.\nWhen I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch "We Live in Public"? I did many years ago and it has definitely shaped how I feel about social media.\nUsing Social Media more conscienscously....mmm I don\'t know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based "fast" media. I ask myself what effect this has on the dynamics of grief, which are slow and\xa0somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature.\nIn my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in\xa0Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other\xa0rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief\xa0strikes, the individual is embedded in a nurturing local community that can help them heal.\nMy two cents..\nI don\'t know if it relevant to your work', u'entity_id': 8509, u'annotation_id': 6368, u'tag_id': 465, u'entity_type': u'comment'}, {u'quote': u'Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person\u2019s final days, parting words and gratitude from the deathbed, captures of assisted suicide and \u201cright to die parties\u201d, and families commemorating the deceased.\nThese experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways \u2013 new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated.', u'entity_id': 548, u'annotation_id': 6367, u'tag_id': 465, u'entity_type': u'post'}, {u'quote': u'Well as very first I would like to graduate @ChristineSa\xa0you for your movement and idea at first of all. I have followed also a little the financial crisis in Greece through the news and the one and only thing that came across my mind is, that there are political conspiracies and reflectation of the crisis and the main reason is an earlier debt to the WEF and the Central Bank System.', u'entity_id': 26041, u'annotation_id': 6374, u'tag_id': 466, u'entity_type': u'comment'}, {u'quote': u'The Greek crisis has a side that not many people talk about - how would paying back the debt affects its environment. Pavlos believes paying off the money lent from the international institutions would create a huge ecological debt in terms of lack of sustainable land use and waste management.', u'entity_id': 704, u'annotation_id': 6373, u'tag_id': 466, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 6382, u'tag_id': 467, u'entity_type': u'post'}, {u'quote': u'As a global- world citizen I find Switzerland IDEAL for my needs to interact with others around the world. The internet and infrastructure is par excellent and although I dont speak much french or german I still mange to communictae well with others here who pass through this project as most have englsh as their seocnd language. Currently my viewpoint is that decentrlaisation or ism is the way forward for our humanity to go into. It is how we will save this planet from greed-exploitation and most of all ...false prop[aganda! - It is vital for me to work with people who are like minded and pragmatic. ..and who see the way ahead as visionaries..and I came across this project in Month Soleil two years ago...since then I have felt that I am doing something positive to bring in the NEW society. At mont soleil we are trying to create this new culture in the shadow of the old and become a model of what we all would like to see in the age to come. I have been involved in many differnet movemnet and when I discovered the decentralise now! movement which is based on the intelligent understaing and world view which I personally resonate with I am empowered to carry on the struggle.', u'entity_id': 721, u'annotation_id': 6381, u'tag_id': 467, u'entity_type': u'post'}, {u'quote': u'Yes, @Alberto, there were many times when I was just travelling to the hospital to get my IV and then go home. There are also private clinics where people just go and receive the cytostatics.\xa0Though, for surgeries and patiens from all over the country this is not a solution...', u'entity_id': 16281, u'annotation_id': 6380, u'tag_id': 467, u'entity_type': u'comment'}, {u'quote': u'I totally agree though - there are a lot of big trends - very many of which would point to moving the hospital to the patient and not the other way around.\n\nIf Romania has a bad stationary hospital scene, then one could see that as very good conditions to make it a well funded (EU level?) pilot project that looks at devolving care into communities further. Romania has a very strong IT backbone which would certainly help as well.\nSome aspects of such a care system could also be funded from defense money - because mobile care (and operating under overload) are things they have to handle as well. But that is only one aspect.\n\xa0@Sabina_U I am happy to see that people get organized well on the ground. What would be other things you need? Is it fair to characterize the situation as a market failure (on what level(s) are the causes then)?', u'entity_id': 11109, u'annotation_id': 6379, u'tag_id': 467, u'entity_type': u'comment'}, {u'quote': u'SENSORICA is the first instantiation of the OVN model. It originated in Montreal, in early 2011. The initial focus of the network was to develop open source scientific research equipment using commons-based peer production methodologies. Indeed, most of activities are coordinated from the SENSORICA Montreal lab, a physical location where local affiliates can meet and work together. However, the Network Resource Planning (NRP) tools that Sensoricans have developed lays the foundation of a strong decentralized community without geographical borders. It allows tracking of the flow of resources through the entire system, at both micro and macro levels. NRP is the mainstay of all SENSORICA projects, and enables SENSORICA to practically implement the ideologies of collaborative and open innovation in a transparent and equitable manner.', u'entity_id': 538, u'annotation_id': 6378, u'tag_id': 467, u'entity_type': u'post'}, {u'quote': u"I think the key here is not to let one giant to emerge, but to allow organic replicas to provide similar offers in their environments, without overarching the whole globe with a great huge fix. If the efforts remain decentralized, scattered, but also adapted to local needs and problems, I can't see a way in which this model would be bad (of course. pharmaceutical companies and other parties interested in ridiculing anything's that out of the system will try to fight it and there will be a need of great success stories that can be told to the people in order to change their attitudes towards alternative approaches to care. Maybe it's not even too late, herbal medicine didn't completely disappear...) or harmful. I believe there should be manuals and ways to ensure people providing help are capable of doing it, however, what kind of manuals and to what extent, I have yet no idea.", u'entity_id': 19048, u'annotation_id': 6377, u'tag_id': 467, u'entity_type': u'comment'}, {u'quote': u'What if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?', u'entity_id': 8632, u'annotation_id': 6376, u'tag_id': 467, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 6375, u'tag_id': 467, u'entity_type': u'post'}, {u'quote': u'Just today, I was considering how much decisions are based on situations and how much situations are shaped by the technological means used by the team. Chats, online files, networks and software are such a heterogeneous and complex network to face the complexity of turning design sessions into events, actions and artifacts.', u'entity_id': 852, u'annotation_id': 6384, u'tag_id': 468, u'entity_type': u'post'}, {u'quote': u"thanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.", u'entity_id': 12111, u'annotation_id': 6383, u'tag_id': 468, u'entity_type': u'comment'}, {u'quote': u"We are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions \u2013 around complex protocols for under 5 child health, for example. We\u2019re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows.\nIn general, we know that reactive systems that rely on sick patients showing up at facilities don't achieve equitable health outcomes. Health systems should be proactive and timely by design: mobile tools have an important role to play in bringing health workers to families' doorsteps often and early.", u'entity_id': 564, u'annotation_id': 6385, u'tag_id': 469, u'entity_type': u'post'}, {u'quote': u'I really enjoyed the game. I am interested in family, and that\u2019s where the care starts. Some people are now looking into chosen families \u2013 me too, as long as I have increased access to travel. But it feels weird to ask for health to chosen families, people who are not blood. Maybe that\u2019s old fashioned of me. But I would like to talk about family. Also: are we creating a kind of tyranny of reputation scores, a kind of God of judges us on the basis of our digitally encoded accomplishments?\n\n\nDenise:', u'entity_id': 38811, u'annotation_id': 11755, u'tag_id': 470, u'entity_type': u'post'}, {u'quote': u'Hello @M\xf8rbeck, good to meet you.\xa0\nI am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus.\nThe traditional way to do this was this: you would leave your parents\' house, marry,\xa0settle down with your spouse and have children. This produced a "one size fits all" world, with\xa0most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are)\xa0allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized.\xa0Is this broadly correct?\nBecause if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!\xa0\nhttps://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups', u'entity_id': 6682, u'annotation_id': 6387, u'tag_id': 470, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 6386, u'tag_id': 470, u'entity_type': u'post'}, {u'quote': u'Winnie: he noticed that every project has some community in it, but communities experience different ways of being in the world, different incentives for being in a community.', u'entity_id': 541, u'annotation_id': 6392, u'tag_id': 472, u'entity_type': u'post'}, {u'quote': u'Defining what constitutes a community, a group, or what is just\xa0collection of individuals that share a friend is not the point.\xa0I guess you could say that the form the group or community takes differs for everyone. Or that the healing process is about meaningful interactions with others, however that may work for you. Helping others is an underrated aspect of this.', u'entity_id': 22611, u'annotation_id': 6391, u'tag_id': 472, u'entity_type': u'comment'}, {u'quote': u'if such an object is loaded by local care is opencare\u201d.', u'entity_id': 574, u'annotation_id': 6403, u'tag_id': 2025, u'entity_type': u'post'}, {u'quote': u'We think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. "Taking care" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community.', u'entity_id': 804, u'annotation_id': 6402, u'tag_id': 2025, u'entity_type': u'post'}, {u'quote': u'Within Woodbine, the struggle for autonomy has been broken down into categories of the most urgent material necessity, meant to focus our attention on tangible goals toward building power within our community. Health autonomy is a crucial part of this. The health resource center is run by a mix of health professionals and those with informal training in various health practices. We want to re-create a sense of agency over health through a focus on the dissemination of usable, teachable skills. We are working with peers who practice herbal medicine, massage, feldenkrais, acupuncture, meditation, yoga and other forms of so called \u201calternative\u201d medicine. We are creating our own definition of wellness, one that is congruent with the realities of our time. There is also a large focus on prevention of illness, of re-fostering the idea of a healthy life, not merely the absence of disease. This is how we begin the necessary process of removing our physical and mental health from systems that would damage them further, to reclaim control over health and use it to increase our collective autonomy.', u'entity_id': 5886, u'annotation_id': 6401, u'tag_id': 2025, u'entity_type': u'post'}, {u'quote': u'It seems to me these are tenets of anything we can rightfully\xa0call open care.', u'entity_id': 8207, u'annotation_id': 6400, u'tag_id': 2025, u'entity_type': u'comment'}, {u'quote': u'The expression "taking care of something" as a German is a rather rational, dry and goal-oriented task. It somehow misses the core of its literal meaning which is a soft, emotional and gentle interaction. So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back? We discussed the question of how can something seemingly burden full turn into a joyful engagement. How can we overcome this cognitive dissonance and what is that undefined obstacle that holds us \u200bback. Because it\'s not laziness. It\'s not carelessness. Maybe it\'s a combination of helplessness (of where to start, what to focus), being overwhelmed (by one\'s own life and tasks) and alone (with an ambition too big for one person). And maybe the answer of today is community.', u'entity_id': 650, u'annotation_id': 6399, u'tag_id': 2025, u'entity_type': u'post'}, {u'quote': u'What is care? To start with such a question a lot comes to mind. Especially after this intense first day of our project kick-off at Sauen, with all these great thoughts, ideas and reflections about what it means to be a human being. I am personally fascinated by the cognitive dissonance I find myself stuck in. This applies to so many aspects of my life.', u'entity_id': 650, u'annotation_id': 6398, u'tag_id': 2025, u'entity_type': u'post'}, {u'quote': u'To me, sadness, unproductivity and inefficiency are symptoms of not having found satisfying connections in life. But the answer to that is often not "trying harder" to find something. It might more often be letting go of images of oneself that one has taken on from other people. Finding oneself is easy to say, and really hard to do. Let go, be open, listen, accept help...', u'entity_id': 29954, u'annotation_id': 6405, u'tag_id': 474, u'entity_type': u'comment'}, {u'quote': u'We should not take the analogy too far, of course. But I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself\xa0in some other way.\xa0Maybe, then, it will not be a vulnerability at all that you do not like ticking boxes! In my experience, it helps to find communities of like-minded people, because it takes a lot of effort to be alone in upholding an alternative vision of society!', u'entity_id': 9396, u'annotation_id': 6404, u'tag_id': 474, u'entity_type': u'comment'}, {u'quote': u"On September 8th 2016, I have initiated an online campaign called \xa0#PlantAtreeChallengeBD\u201d The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It\u2019s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem.\nAlong with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.\nPrimarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each \xa0other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10.\nTo bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor\u2019s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO\u2019s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on\xa0increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first carbon", u'entity_id': 848, u'annotation_id': 6406, u'tag_id': 475, u'entity_type': u'post'}, {u'quote': u'Of course with some different focus groups and cases,\xa0but "The Citizen" does not exist. So what I\'d think is crucial is the presentation format and delivery method.\n\nFor example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. "Where there is no Doctor", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term.\n\nMost documents I know are written in a linear fashion, either for "the general populace" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag.\n\nInterestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better.\n\nI think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios):\n\n\nCopies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer.\nRecording of spoken/played material via phone, perhaps eventually put into writing.\nPencil/coal stick/copy machine copies of simple illustrations/heuristics/nmemonics/ not more than a few lines in most cases.\n\n\nMy suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific "type" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as "album art" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement "xyz"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.\n\nAudio has the advantages that you do not need to drop everything you\'re doing, you can do it while walking, and you can do it in the dark.\n\nIf you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required.\n\nMy schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course.\n\nI wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the "professional care & aid circus" can dock into, and many of the respective group\'s fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.\n\nThe implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you\'ll probably be among them.\n\nThe simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented.\n\nMake a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half "upwards" and half "downwards".\n\n*Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.', u'entity_id': 13504, u'annotation_id': 12331, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u'Of course with some different focus groups and cases,\xa0but "The Citizen" does not exist. So what I\'d think is crucial is the presentation format and delivery method.\n\nFor example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. "Where there is no Doctor", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term.\n\nMost documents I know are written in a linear fashion, either for "the general populace" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag.\n\nInterestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better.\n\nI think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios):\n\n\nCopies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer.\nRecording of spoken/played material via phone, perhaps eventually put into writing.\nPencil/coal stick/copy machine copies of simple illustrations/heuristics/nmemonics/ not more than a few lines in most cases.\n\n\nMy suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific "type" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as "album art" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement "xyz"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.\n\nAudio has the advantages that you do not need to drop everything you\'re doing, you can do it while walking, and you can do it in the dark.\n\nIf you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required.\n\nMy schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course.\n\nI wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the "professional care & aid circus" can dock into, and many of the respective group\'s fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.\n\nThe implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you\'ll probably be among them.\n\nThe simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented.\n\nMake a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half "upwards" and half "downwards".\n\n*Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.', u'entity_id': 13504, u'annotation_id': 12330, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u"@Alex_Levene this is the kind of question and expert\xa0input or exchange we'd want at the hackathon to support refugees in Jan/ Feb!! It's pretty awesome, and imagine including all these kinds of info in a curated, structured document for any given question!", u'entity_id': 13469, u'annotation_id': 12329, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u"@trythis thank you! I 'll study all these carefully! We don' t do backpacks for the refugees anymore so we focus to backpacks that we can prepare for ourselves or other people and keep them for an emergency. So, we have to think about many diffirent things. For the refugees I've done this:\n\n\n01 \u03915 \u03a0\u0395\u03a1\u0399\u0395\u03a7\u039f\u039c\u0395\u039d\u0391 \u03a3\u0391\u039a\u0399\u0394\u0399\u039f\u03a5.jpg1240x874 172 KB\n\n\nBut this is a draft. It needs something professional with the same style in a platform on line. When somebody wants to prepare a backpack could use specific items and also a list with more details for its item. What is this? How to use it e.t.c.", u'entity_id': 12941, u'annotation_id': 12328, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u'In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:\xa0\nCarrots, Broccoli, Fennel = Low Histamine\nTomato, Orange, Kiwi = High Histamine\nCoffe, Garlic, Grapes =\xa0sometimes tolerated\nThis are informations\xa0that\xa0anyone can find online but while at the supermarket or while choosing\xa0your ice cream flavour, it is handy to have it quickly ready all together in an app.\nThe first phase of the app will also contain a list of\xa0Common symptoms: Headaches, migraines,\xa0Vertigo, dizziness,\xa0Abdominal cramps ecc.\nAnd it will allow the user to check symptoms and associate them with foods into a diary/calendar system.\nThis is handy in case the user wants to reintroduce a food or wants to monitor the effects\xa0of some food that are sometimes tolerated.\nIn the first phase of the app the system will not ask many questions nor give too many informations.\xa0It will mostly be a structured tool for annotation that will empower the personal\xa0awareness of the user.\n\nThe app \u201cClue\u201d (menstrual cycle tracking), is a very good example in this terms, it doesn\u2019t\xa0do much next to allowing women to structurally note down dates and\xa0symptoms, yet it is a powerful tool of awareness.\xa0\nThe\xa0data-analisys will only enter \xa0in the\xa0second phase. For this there will be some work to be done to design the interaction between what we find trough the data, the assumptions we already have, our approach on care, and the collaboration with practitioners and medical experts.\xa0\nI\xa0hope\xa0that\xa0I\xa0have answered your questions and please let me know,\xa0I am happy to answer if there are more questions.', u'entity_id': 20905, u'annotation_id': 6415, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u'That is in part why I looked at ways of short term organization and info dissemination. The other thing that would be helpful and perhaps realistic for some poeple at least is to try to be able to provide a useful service during such emergencies.', u'entity_id': 13506, u'annotation_id': 6412, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u'This guide is one of the reasons I decided to establish the assosiation "Cosmus diy" (the bureaucracy part). Most of the people here have experience at Idomeni and still have at the camps. But I think it must be more wide. Not only about the refugees\' wave or about a specific place/country. Maybe a few things can be the same but every place should have a diffirent guide. And then we can map and add people and skills or knowlenge.I also have an idea about the clothing problem and how we can do "smart balls" with clothes anywhere This is more complicated and I think it needs a video.', u'entity_id': 13497, u'annotation_id': 6411, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u"This kind of input really is helpful and i can already see a 'Citizens guide to supporting people in an emergency' style document that contains these kinds of ideas and responces.", u'entity_id': 13477, u'annotation_id': 6410, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u'Regarding organization I had some thoughts (but mostly focused on immediately after a disaster) which may be more helpful for the refugees to get a little more organized (and perhaps interface with you better). It is a heuristic approach, so it is not intended to produce the optimal or ideal res', u'entity_id': 13409, u'annotation_id': 6409, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u'Try to use a combination of images and text, a little like a meme. The image is most important (says more than 1000 words) and will ideally explain most of the things that have been discussed in many hours before. Ideally the people who are really deep into the topic do a thorough image search and you pool them together, and then photoshop or redraw. Of course one image (even if it is very good) can\'t explain everything, that is why you need a little text (english, greek, arabic probably). Similar to this (called "exploded view) or this (but so you can photocopy it - so brighter and increased contrast) or this (the words explain the "why" not the item, if it is too difficult use another illustration). You may want to have one page for as a sort of inventory and one page as a sort of manual (e.g. there is a lot you can do with the space blanket that needs a little extra info (maybe Lizzie could also check the list?)).', u'entity_id': 12568, u'annotation_id': 6408, u'tag_id': 2026, u'entity_type': u'comment'}, {u'quote': u'.\xa0It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.', u'entity_id': 15411, u'annotation_id': 6417, u'tag_id': 478, u'entity_type': u'comment'}, {u'quote': u'Helping both caregivers and care receivers in dealing with dementia', u'entity_id': 5479, u'annotation_id': 6416, u'tag_id': 478, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 6425, u'tag_id': 480, u'entity_type': u'post'}, {u'quote': u'over decades we lost our acces to knowlege, public decision making (if there was ever such a thing?) and there is much need to create a base for organizational intelligence and social decision making. There are some tools available like wikipedia and e-govenance, gut to difficult to manage for the broad society and often higly manipulated by "editors". To find a way for decisionmaking, maintaining bottom up decision making by meta-rules that can be adjusted in an iterative democratic manner and making wisdom available not driven by profit intersts.\nI wish you good luck, because your issues have a high priority for societal development and as well for a socio-economic development.', u'entity_id': 20815, u'annotation_id': 6424, u'tag_id': 480, u'entity_type': u'comment'}, {u'quote': u'The second area of our work is e- democracy. In this strand, we\u2019ve built an open source platform DemocracIT that supports the process of public consultation, which is theoretically common in Greece, but tedious in reality. We\u2019ve tested it and presented to the governmental bodies. Besides, there is also ActiveCommons platform, which we\u2019ve designed to foster collaboration for the common good between It caters organisations, NGOs and groups of people who want to change something and need an effective tool for collaboration.', u'entity_id': 528, u'annotation_id': 6423, u'tag_id': 480, u'entity_type': u'post'}, {u'quote': u'Like you, I am interested in participation. My own work has been about ways that the Internet can enable more effective forms of participatory democracy. I even wrote a book about this. My point of departure was that participation as we inherited it from the 20th has not made a substantial impact on decision quality or societal cohesion, at least not in Italy, not even in the best cases. There are many reasons why this happens. Some of them:', u'entity_id': 30886, u'annotation_id': 6422, u'tag_id': 480, u'entity_type': u'comment'}, {u'quote': u"we don't want to create another area of dependency, where the NGO model fills a hole in a society.", u'entity_id': 29958, u'annotation_id': 6426, u'tag_id': 481, u'entity_type': u'comment'}, {u'quote': u'I was reminded of this story when reading the headlines these days, how Germany\'s trend of receiving refugees was considerably reversed in 2016 and worse, people are now sent back to the borders of Europe (elsewhere called "voluntary deportations"?!).\nAlso, I re-assigned this story to the "Policies of Care" challenge. | @Franca', u'entity_id': 7469, u'annotation_id': 6427, u'tag_id': 482, u'entity_type': u'comment'}, {u'quote': u"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles,\xa0even skill up in a process that difficult.\xa0\n\nThere are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder,\xa0said something similar about \xa0how conversation in which neither party is an expert can be lifechanging.\n\nI'm curious about\xa0the\xa0group which seems more or less open - can anyone who reports\xa0feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?", u'entity_id': 10263, u'annotation_id': 12332, u'tag_id': 2027, u'entity_type': u'comment'}, {u'quote': u"I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the hype of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better.\nHow do we help people find the 'affliction' they have?", u'entity_id': 16932, u'annotation_id': 6438, u'tag_id': 2027, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 16765, u'annotation_id': 6437, u'tag_id': 2027, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 6436, u'tag_id': 2027, u'entity_type': u'post'}, {u'quote': u'From my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci.', u'entity_id': 562, u'annotation_id': 6435, u'tag_id': 2027, u'entity_type': u'post'}, {u'quote': u'On another note, at university, they had \u201cprograms\u201d in place and designed to enhance the student\u2019s life, as @Sharon\xa0mentioned young adults can be very hard on themselves.\xa0 Aided in concerns or problems such as a feeling of low self-esteem, anxiety, depression and academic concerns.', u'entity_id': 26061, u'annotation_id': 6434, u'tag_id': 2027, u'entity_type': u'comment'}, {u'quote': u"When you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy,\xa0this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning\xa0point where you decide\xa0that something needs to happen, that you need some kind of help now, because you don't know what to do anymore,\xa0and then you are told that the next possible appointment is in 8 weeks.", u'entity_id': 15782, u'annotation_id': 6433, u'tag_id': 2027, u'entity_type': u'comment'}, {u'quote': u"Long before I was finally diagnosed with depression 1 year ago, I struggled with intense feelings of stress and self-loathing, feelings that were overwhelming me, because I could not really understand what and why I was experiencing. I consider myself privileged to be born into a comfortable middle class life, to have a supportive family and friends, no academic problems. In theory, I was supposed to be happy. So why was I feeling so paralysed and helpless? Considering there are so many people who have it much worse than me, feeling sad seemed irrational, unjustified and shameful.\nEveryone around me seemed to manage just fine, effortlessly juggling scholastic and social expectations. So I thought it must be my fault that I was barely holding it together. I was ashamed to admit that I was struggling and ask for help. When I finally gathered enough courage to talk openly about my problems with my friends and family members, I was stunned how much it resonated. Once I had shared my troubles, many of them would admit some of their own. These were people that I had known for more than 10 years, people that I thought I knew inside out, suddenly telling me about insecurities of theirs that I never even suspected them to have. Such moments of connection were a very special experience.\nHowever, at times it was also exhilarating. It's not easy for either party.\xa0Opening up, even to the people I trust most,\xa0took a great deal of mental effort. Then, I didn\u2019t know how to properly express what I felt. And they didn\u2019t know how to react. I didn\u2019t know what kind of reaction I was hoping for. I didn\u2019t want to burden or worry anyone. How often did I find myself alone in my room bawling my eyes out, finally calling my mother or my best friend, just to hang up 5 minutes later even more frustrated and miserable and guilty than before. They were only trying to help me to the best of their abilities, but somehow all well-meant compliments and advice only made me feel worse. I didn\u2019t think they could truly understand me and it was so difficult to communicate what I wanted to say, when I didn't even\xa0really know what that was myself. When they tried to relate their own experiences to mine, it felt like they were comparing a broken arm to a papercut. When they were trying to give me tips on health and well-being, it felt patronizing, as if I didn\u2019t know and try that already. This was nothing that doing a round of Yoga or 8 hours of sleep or being more social could simply \u2018fix\u2019. Just thinking such things added to my guilt and shame, because it was like I was taking their attempts of help for granted. Devils circle.\nWhat helped me most in the end wasn\u2019t necessarily talking about anything in those situations. Discussing these things with a neutral person such as a therapist was a much better framework for me to sort out my thoughts without the added complications of emotional attachment. The greatest help for me was just someone being there and giving me a hug. Telling me that they know it sucks and just sharing a little bit of the suckiness in that moment.\nEDIT:\nHow do\xa0you deal\xa0with emotional issues? In what situations do you share\xa0your thoughts with others? How does this make you feel? What might prevent you from seeking support?", u'entity_id': 677, u'annotation_id': 6432, u'tag_id': 2027, u'entity_type': u'post'}, {u'quote': u'This is a beautiful story.\nIn an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms.\nIt seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they\u2019re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them\xa0tech-savvy skills like using email, social media and Skype.\xa0The bonding created from spending time together is incredibly important for everyone. Social relationships are key\xa0to human well-being and in the maintenance of health.\xa0The intergenerational living model started in 2012, with a few more nursing homes follow. \xa0Regular social interaction is necessary for mental health as well as social interaction.\nRead the complete story here: \xa0https://goo.gl/LYUpPP', u'entity_id': 809, u'annotation_id': 6431, u'tag_id': 2027, u'entity_type': u'post'}, {u'quote': u'From my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci.', u'entity_id': 562, u'annotation_id': 6430, u'tag_id': 2027, u'entity_type': u'post'}, {u'quote': u'P: i love it. dealing with depression through humor and showing your feelings', u'entity_id': 5658, u'annotation_id': 6429, u'tag_id': 2027, u'entity_type': u'post'}, {u'quote': u'It\'s such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of "distance" such as this one helpful for handling the feelings. And for sensitising others/ building literacy around how to help/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...', u'entity_id': 26051, u'annotation_id': 6428, u'tag_id': 2027, u'entity_type': u'comment'}, {u'quote': u'Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches. The may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the "distilled" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern. Another issue is cost effective and clean transportation/distribution. There is a reason mankind mostly spread along rivers for a very long time.', u'entity_id': 25788, u'annotation_id': 6440, u'tag_id': 484, u'entity_type': u'comment'}, {u'quote': u"Before eventually tapping into desalination, it's best to do proper water management like in this example. Just let sun and rain do the desalination Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.", u'entity_id': 26958, u'annotation_id': 6439, u'tag_id': 484, u'entity_type': u'comment'}, {u'quote': u"I'm an Interior Architect, Business Woman, Mother and active citizen. I have been running my own Design business for the past 9 years ever since I have left the corporate hospitality world. I started with my company Design2Style in partnership with my Husband, designing residential & interiors and developing brand design for companies. Over time, my interest and knowledge of design thinking and strategy increased, gaining experience in projects and from attending various conferences on the subject, which resulted in moving forward, evolving personally and professionally. I launched Belgium Design Council, which applies design thinking on the project's infrastructural level. This allowed me to move from aesthetic design to applying design thinking processes in \u2018designing\u2019 communities.", u'entity_id': 716, u'annotation_id': 6513, u'tag_id': 487, u'entity_type': u'post'}, {u'quote': u'Curve in response to the #HackOnWheels brief.\xa0\n\n\ncurve-hero-nelson-700.jpg700x1078 184 KB\n\n\nAlso are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/cheap materials/open source design)? I think it started in New York but I understand there are initiatives\xa0here in Glasgow now', u'entity_id': 23379, u'annotation_id': 12352, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'Idea is about helping blind people about the outside world\u2019s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API\u2019s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)\n\nWhat are the main aspects of this project?\n\nOur goal is to help the blind people. Our perspective is to find a way to eleminate the difficulties they face everyday.\n\nHow to?\n\nWe can\n\n\nuse a eyeglasses with earphones - headsets and eye bandages\nblind smart sticks\n\n\nTechonolgy out there\n\n\ninfrared sensors\nArduino + 3 ultrasound sensors+ buzzer +motor - Another chipset + RFID + ultrasound sensor\n\n\nProject Halo:\n\n\nRigid frame (I used a round embroidery frame)\nFemale headers (for the sensors)\nUltrasonic Rangefinders (Parallax Ping Rangefinders) - Wire (Wires with male and female leads are conve-nient)\nGlue\nTwist ties to tidy up wiring\nSoldering station\nMale headers (for creating a bridge to feed 5v and\xa0ground\nRJ-45-Term Screw Terminal (2) - RJ-45 Cable\nMarker\n\n\nMotor Modules:\n\n\nVibration Motors (5) - Motot, VIB,3V/60mA, 7500RPM\nGrid-Style PC Board\nMale header pins\nMotor "shroud" (to prevent things getting sucked into\xa0the motor)\n\n\nHaptic Headband:\n\n\nHeadband\nSewing Kit\n5 Motor Modules\nWire (Wires with male and female leads are conve-nient)\nSafety Pins\nFemale headers\nSoldering station\nRJ-45-Term Screw Terminal (2) - RJ-45 Cable\nMarker\n\n\nWiring the Microcontroller:\n\n\nArduino Mega 2560\nWire (Wires with male and female leads are conve- nient)\n5 LEDs\nDarlington IC - ULN 2803A - 2 port screw terminal\n9v battery\n5v regulator\n\n\nBuilding the Software:\n\n\nUSB cable\nPC (for editing code and downloading to Arduino)\nArduino\nArduino development environment (www.arduino.cc) - Source Code, modified Ping.h library\n\n\nSmart Blind Stick - Instructables\n\nAn Arduino uno.\n\nA Ultrasonic sensor( HCSR04 ).\n\nA Mini breadboard.\n\nA 9 volt battery.\n\nA 9 volt battery connector.\n\nDC male power jack.\n\nA Buzzer.\n\nSome Jumper wire.\n\nAn Broken cellphone from scratch.\n\nA Toggle switch.\n\nOther tools and parts used in this project :\n\n3/4 inch diameter PVC pipe (used for making the stick).\n\n3/4 inch diameter PVC elbow.\n\nInsulation tape.\n\nSome small screws for mounting Arduino. Screwdriver.\n\nUtility knife.\n\nInstant adhesive Glue.\n\nA Box to Put your Arduino and other electronics, or think about it later.\n\nXploR cane\n\nThe \'XploR\' mobility cane was developed at Birming- ham City University\n\nIt uses a camera and built-in sensors to scan for faces in a crowd\n\nIf it recognises a face the cane vibrates and guides user with audio cues\n\nSensors work up to 32ft (10 metres) and faces are stored on an SD card\n\nRead more: http://www.dailymail.co.uk/science- tech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family -crowd-guides-blind-user-exact-location.html#ixzz4L 51k7yJX\n\nWhat have been done?\n\n\nhttp://imwm.org/the-infeared-walking-cane-by-parasuraman-kannan/\nhttp://arduinoart.blogspot.it/2015/05/project-guide-stick-for-blind-people.html\nhttp://www.instructables.com/id/Smart-Blind-Stick/\nhttp://www.instructables.com/id/Haptic-Feedback-device-for-the-Visually-Impaired/\nhttp://www.dailymail.co.uk/sciencetech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family-crowd-guides-blind-user-exact-location.html', u'entity_id': 770, u'annotation_id': 12351, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'After the first submission, our original project "doc.doc" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually\xa0turned out the early project in ResQ!\n\nIn particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as\xa0emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.\n\n\xa0Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it!\n\n\n\n\n\tOur project in a tweet\n\n\n\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.\n\n\n\n\n\tProblem that our project\xa0is willing to solve\n\n\n\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.\n\nThe current way of working shows the following problems:\n\n\n\n\n\tThe language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.\n\n\n\tThe missing digitalization of the gathered health data and the consequent discontinuity of the healing process.\n\n\n\tThe limited precision of the anamnestic research due to the high number of patients and the short time available.\n\n\n\n\n\tFinal User, individuals and\xa0community target\n\n\n\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.\n\n\xa0https://www.youtube.com/embed/MZSMi316E-Y\n\n\n\n\n\tSolution, brief description of the project\n\n\n\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.\n\n\nResQ-board.jpg2045x2500 640 KB\n\n\n\n\n\n\tTechnologies we will adopt\n\n\n\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.', u'entity_id': 866, u'annotation_id': 12350, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.", u'entity_id': 863, u'annotation_id': 12349, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Hey @Gentlewest let me post a very technical picture here which has lots of stuff in there (we will probably not even need half of that). This is most of the hardware I have collected around the general idea already.\xa0 I can explain it all in detail, but probably it is best to discuss what you actually NEED first.\n\n\n20170626_120731 (2).jpg2500x1608 404 KB\n\n\n( @Matthias can you increase upload limit a tad, my new phone camera spits out 5.2 MB... this cost me 3 attempts and 30 minutes. Also mentioning this because it is still related to the project we discussed in Nepal context ).\n\nThia here includes many spare parts, a small radio station, a powerful loudspeaker, voice recorders to takes tests and get feedback, etc.\n\nI like your idea about including music - and I had thought something similar. On Jamendo.com we could get free music without any legal trouble. Because the mp3 players are relatively simple (you can only go forward or backward by one complete track) one could put the lecture before the music in the same track. So they would have to listen to the lecture before they get to the music. This will be some extra work in the beginning but I think you made a good point. It is possible to do ALL KINDS of sound editing in a program called audacity (http://sourceforge.net/projects/audacity/) but I think it would be good to find something more simple.\n\nAnother thing one could offer are more or less educational stories - e.g. for language courses (e.g. from Librivox.com). But all that is a different topic.', u'entity_id': 28471, u'annotation_id': 12348, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'I have already made a small collection of mp3 players, ear plugs for listening, some spare parts, and solar for charging the batteries. I have started to test them for reliability and easiness to repair and I am hopeful that most will survive many months before they have to be repaired. I think the cost of the audio lecture was 0.001-0.0005 EUR per minute (+ the cost of recording the lecture). The mp3 players cost about 3 EUR but the memory card also cost 1 EUR for 1 GB of storage (which is plenty). Sooo:\n\n1 Player needs to run for 4000 to 8000 minutes (66.7 hours). A fresh player will have to charge about 15-20 times for that. So that means they have to survive about 3 weeks of one use per day on average. If they survive longer or get repaired cheaply (very possible) then it gets significantly cheaper.\n\nIf you know what illustrations are needed those could be printed on a robust support (e.g. playing cards or similar). Some of them could also be designed to be copied by hand (e.g. as a memory exercise).\n\nA couple of advantages:\n\n\nyou know what gets taught\nkids could be working at the same time, or be at home\nless humans in the loop (has some disadvantages, but is perhaps helpful against corruption)\nno literacy required\n\n\nLet me know if you are interested. I have much more thought on that but I really need advice from someone who knows the real problems in Cameroon much better.', u'entity_id': 26068, u'annotation_id': 12347, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u"Il tuo progetto in un tweet*\n\n\n\n\n\n\tDoc.doc \xe8 la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica pi\xf9 completa possibile.\n\n\n\tBisogno o problema che il tuo progetto cerca di risolvere*\xa0\n\n\n\n\n\n\nSempre di pi\xf9 patologie complesse necessitano della collaborazione tra molti specialisti della cura.\n\nA questi diversi professionisti manca per\xf2 la possibilit\xe0 di comunicare e condividere informazioni su una piattaforma dedicata.\n\nL\u2019attuale procedura di lavoro evidenzia i seguenti problemi:\n\n\nDelega al paziente la responsabilit\xe0 nel fornire le corrette informazione relative al proprio caso.\nRende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi.\nNon permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all\u2019incontro con lo stesso.\n\n\nDoc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura.\n\nInoltre la progettazione UX \xe8 stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un\u2019email.\n\n\n\n\n\tUtente finale, individui e/o comunit\xe0 di riferimento*\n\n\n\n\n\n\nIl prodotto \xe8 pensato per i medici, ma i maggiori benefici andranno ai pazienti.\n\nDoc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (pi\xf9 pianificazione, pi\xf9 chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando.\n\n\n\n\n\tSoluzione, breve descrizione del progetto*\n\n\n\n\n\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\nInoltre, in una fase successiva, sar\xe0 possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro\xa0categorizzazione per patologia.\n\n\n\n\n\tTecnologie utilizzate o che vorresti utilizzare*\n\n\n\n\n\n\nLo strumento che abbiamo progettato si esprimer\xe0 attraverso un\u2019applicazione mobile per ambienti Android e iOS, che verr\xe0 quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l\u2019utilizzo del software il pi\xf9 immediato possibile. E\u2019 comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform.\n\nIl servizio cloud potr\xe0 essere sviluppato in NodeJS, con basi dati MongoDB e MySQL.\n\n\n\n\n\tSito web (o social network)\n\n\n\n\n\n\nIn fase di pianificazione.\n\n\n\n\n\tLicenza, che pensi di utilizzare\n\n\n\n\n\n\nOpensource\n\n\n\n\n\tStato attuale del progetto*\n\n\n\n\n\n\nIl progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\n\n\n\n\n\tConsiderando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto.\n\n\n\n\n\n\n1.0 Scoperta\n\n1.1 Osservazione del contesto\n\nDoc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d\u2019occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti.\n\n1.2 Acquisizione di idee, spunti, intuizioni\n\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\n\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\n2.0 Definizione\n\n2.1 Analisi delle soluzioni\n\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\n\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\n\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\n\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\n\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\n\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\n\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n\n3.0 Sviluppo\n\n3.1 Progettazione e prova del prototipo\n\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\n\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\n\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\n\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\n\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n\n4.0 Rilascio\n\n4.1 Completamento del prodotto/servizio\n\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\n\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\n\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\n\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\n\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.", u'entity_id': 33729, u'annotation_id': 12346, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Tutto \xe8 nato da una nostra esperienza\n\nMonica: \u201cNicoletta? Andiamo a mangiare una pizza?\u201d\xa0\n\nNicoletta: \u201cCerto! Prenoto per due al solito posto dove puoi mangiare anche tu?\u201d\xa0\n\nM.\u201cOk!\u201d.\n\nRistoratore: \u201cBuona sera Signore, avete prenotato?\u201d\n\nN. \u201cS\xec, per due; nome Nicoletta\u201d. -\n\nEccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l\u2019ordine.\xa0\n\nN.\u201cPer me una prosciutto e funghi\u201d\n\nM. \u201cIo invece..premetto: sono intollerante al glutine e al lattosio...\u201d il cameriere annuisce \u201c...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...\u201d\n\nC.\u201cS\xec signora\u201d\xa0\n\nM.\u201dBene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini\u201d\n\nC. \u201cDa bere?\u201d\n\nN. \u201dUna birra per me!\u201d\n\nC.\u201dE lei?\u201d\n\nM.\u201dIo? Che cosa posso bere che non sia acqua?\u201d\n\nC.\u201dAbbiamo due birre senza glutine\u201d\n\nM.\u201dQuali?\u201d\n\nC.\u201dLa Daura e la Peroni\u201d.\n\nGiro lo sguardo verso Nicoletta con un\u2019espressione rassegnata e penso \u201d...sempre quelle...\u201d\n\nPassano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca \xe9 terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame per\xf2 e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - \u201cChiss\xe0\u201d.\n\nArriva la pizza e a quel punto, mi assale lo sconforto pi\xf9 profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia...\n\nNon ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio!\n\nN. \u201cMonica? Mi fai assaggiare?\u201d\n\nM.\u201dCerto!\u201d\n\nN.\u201d...Mmm...il sapore non \xe8 male ma questa non \xe8 una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. \xc8 proprio triste...\u201d\xa0\n\nM.\u201c...Gi\xe0...\u201d\n\n---------------------------------\n\nQuesta serata per Monica e Nicoletta non \xe8 stata l\u2019unica; altre l\u2019avevano preceduta e altre ancora ne seguirono.\n\nAd ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso:\n\n\n\n\nMonica elenca ad alta voce al cameriere le sue intolleranze,\xa0\n\n\nil cameriere annuisce puntualmente,\xa0\n\n\nMonica\xa0 si barcamena nella lettura di menu labirintici (a volte privi dell\u2019elenco degli allergeni)\n\n\ndalla cucina arriva l\u2019avviso che l\u2019alimento richiesto non \xe8 disponibile\n\n\nMonica si accontenta di \u201cci\xf2 che propone la cucina\u201d nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori\n\n\n\nE in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All\u2019interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.\xa0 \xa0\n\nQui in allegato la pizza di Monica', u'entity_id': 824, u'annotation_id': 12345, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Hello there,\xa0\xa0 I am copying a story on behalf of Filippo, a volunteer to the community of\xa0 pemphigus, an auto-immune disease that affects skin layers, causing them to detach, form blisters, among other complications.\xa0\xa0 Filippo will join the conversation, but we wanted to speed up the onboarding barrier, while link the story to other software volunteers whom we met at the MakerFaire in Rome.\xa0 Lets see how his works \n\n" Just as first input, a simple idea that is needed is a \u201cscratching indicator\u201d?This is something missing in the scenario, I mean some app that using a wearable device (like a apple watch or something designed ad hoc \u2013 a simple arduino like mb with an accelerometer should be sufficient) can identify the scratching movement of the arm an apply an indicator.The objective is to measure a quantity (a number) that indicate the duration and the intensity of scratching activity of te patient, building a sort of standard to be used for that \xa0that kind of patoloty and patients to be used to analyze the efficacy of specific therapy on one of the worst and less understood symptoms, the itching.\xa0\xa0This could be the starting point of this app for pemphigus/pemphigoid patients, (but not limited to them), that can be integrated with other functionalities aiming to \u201cmeasure\u201d efficacy of therapies granting an indication of the status of the patient.\xa0Do you think this could be a valid input to start the discussion?"', u'entity_id': 799, u'annotation_id': 12343, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 780, u'annotation_id': 12342, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 778, u'annotation_id': 12341, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"Parkinson's, as we all know, is a serious ailment for which there has not been a cure yet. What makes the ailment\xa0even more intimidating is that the symptoms keep varying\xa0from person to person and we never know in what way is going to affect the patient. Wave, as our team is called, is trying to make someone suffering from parkinson's and their caregiver's lives easier using technology that we have today at our disposal.\n\nThe first signs of someone having parkinson's are the motor symptoms. These symptoms include essential tremors in hands and other parts of the body. These symptoms further advance overtime enough that it makes it difficult for them to perform the easiest of daily tasks.\xa0The symptoms occur when the level of dopamine, the chemical responsible for body movement coordination, reduces in the brain. Medication is used to replenish the dopamine levels or fake the action of the dopamine.\n\nWith our prototype, we propose to make the lives of someone with parkinson\u2019s simpler. Our prototype will be wearables that can monitor the motor symptoms of the patient.\xa0Our prototype will monitor the common symptoms like tremor and stiffness in the human body, and if the symptoms are showing an uncommon behaviour, the prototype can beam the information to the smartphone to remind the patient or the caregiver to take the medicines to or to see the neurologist.\n\n\nParkinson&#39;s Sketch.jpg600x1270 104 KB\n\n\nOur goal is to help someone who has recently started showing symptoms of parkinson\u2019s to track their motor symptoms and also prolong the initial stage as much as possible.\n\nA lot of research-based apps and services are available today that help in better understanding the symptoms of Parkinson\u2019s. Apps like mPower and Parkinson\u2019s Central are monitoring the patient\u2019s health from their rdaily movements and tasks along with daily or weekly surveys. With our prototype, we not only propose to help in tracking symptoms to better understand the disease but we also want to help the patient in the best way possible.", u'entity_id': 768, u'annotation_id': 12340, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'A Do-It-Yourself Revolution in Diabetes Care\n\nParents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin.\n\n  \n  \n    \n    \n  \n  \n\n\n\nThis is pretty amazing: an entire open source\xa0ecosystem, from sensors to apps to insulin, emerging from patients.\xa0\n\nWhere do we want to store all this stuff?', u'entity_id': 5392, u'annotation_id': 12339, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries.\xa0Communities will be taught how\xa0to make the\xa0filter and the purification drops - made from\xa0clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.\xa0\xa0\n\nInteresting read:\xa0http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet\n\n\n\nAccess to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world\u2019s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop.\n\nThe MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source.\n\nThe MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa.\n\nThe impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.', u'entity_id': 710, u'annotation_id': 12338, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'A minimal self-diagnosis kit, that can be extended by modules. The basic version would be perhaps something like "where there is no doc/dentist" in an adapted audiobook format. This would not require literacy and could be provided via extremely cheap mp3 player (sell for <1 USD) + memory card (2-3 USD for library size) + minimal solar charger to trickle charge the battery (1-5 USD).\n\nNext step up would be a recording function, a sampling kit, and a photo kit. Next step from that would be a full smartphone with some diagnostic hardware. The smartphone would be important to catch many of the cognitive bias pitfalls associated with self-diagnosis*. But both these could be intermittently provided via a long range drone delivery:', u'entity_id': 16393, u'annotation_id': 12344, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'PROJECT PROPOSAL\n\nIn order to achieve our goal we propose a combination of an interactive exhibition and an information booth. This pop-up stall can easily be set up at universities events like open days and conferences.\n\nWe will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one\'s body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three.\n\nThose who are\xa0brave enough to test our simulators will receive a positive feedback. They will get to choose between 3 gifts: Stickers that encourage everyday task such as: "got out of bad", "took a shower" and "washed my laundry" in order to demonstrate how difficult these tasks can be to certain people. They could also choose comforting cynical tea bags that they can grant a friend in need on a rainy day or shit shaped chocolate pralines to compensate for the horrors they have just been through. The exhibition will also include an interactive board in which participants can share their feelings caused by the simulators or just generally and a second board presenting useful information regarding mental issues: how to identify, approachable treatments, support groups and other solutions. The first exhibition will take place during Berlin University of the Arts Semester end\'s exhibition and we hope it will continue to other universities around berlin and even in other cities in Europe.\n\nIf you hope so as well you are welcome to join us in a number of ways:\n\n\nSupport our Startnext campaign going online July 20th! Help us fund the first ever Shit Show and enjoy our moody merchandise (link tba)\nSpread the word! Our first intention is to raise awareness of mental health issues. Please share our ideas and solutions, you might even help someone.\n\n\n(It will also be nice if you would share our Startnext campaign once it\'s up \n\nParticipate our research, tell us how you feel when you are down in our survey or just share with us your Ideas and comments. We would love to hear some feedback and improve our project\n\nPauline Schlautmann: p.schlautmann@udk-berlin.de\n\nOmri Kaufmann: omri207@gmail.com\n\nThe production of this\xa0article was supported by Op3n\xa0Fellowships\xa0-\xa0an ongoing program for community contributors\xa0during May - November 2016.', u'entity_id': 511, u'annotation_id': 12337, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Support the Shit Show on Startnext!\xa0startnext.com/theshitshow\n\nWe have been studying it for 3 months, we have been dealing with it most of our life, we are highly aware of the importance of engaging with it but we still find it incredibly hard to talk about.\n\nPauline and I are both product design students and together with Nele and Luisa who study communications we are team UP. In the context of "Hacking Utopia", a human centered design project at the University of Arts Berlin, we are investigating mental health. This article explains our approach of boosting mental resilience and give you the chance to get involved in our project.\n\nIn our previous contributions on Edgeryders we described how we started off with the question of making sadness, unproductivity and inefficiency less shameful. We discovered two TED talks that influenced us greatly: The power of vulnerability by Brene Brown and Depression, the secret we share by Andrew Solomon. As later confirmed by the psychologists we interviewed, these talks made us understand that sharing our feelings is a key step towards mental resilience. Establishing a sustainable, personal connection this is necessary for recovery and growth. When we hide our condition, we ignore it, it becomes worse.\n\nUSER INTERVIEWS\n\nThe issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students.\n\nAs part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned\xa0that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support\xa0when everyone tries to hide their struggles.\n\nAs a result, most people\xa0don\u2019t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves.\n\nYet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence,\xa0stemming from a general lack of awareness.\n\nOUR GOAL\n\nWe want\xa0to challenge the current attitude towards psychological care. Our project tries to de-stigmatize psychological pain and make the sensitive, \'taboo\' issue of mental health more present and approachable to the public. We believe that udnerstanding and empathy is vital to provide good care for people that are suffering from emotional distress. We want to make it clear\xa0that feeling shitty is nothing to be ashamed of, but actually a very common thing. Also, we want the impact of these feelings to be understandable, so that more people can offer informed, helpful responses. When this happens, the threshold of reaching out is lowered, which in return allows problems to be addressed before they develop into serious mental conditions.\n\nINSPIRATION\n\nThere are a number of inspiring projects who deal with exactly this issue of awareness. One clever way artists are spreading awareness is over the internet. Tumblr users like Rubyetc, Beth Evans or Sarah\u2019s Scribbles have gained quite a following with their funny, relatable comics about everyday struggles. Seeing that you are not alone in your suffering can be very comforting. Recently, illustrator Gemma Correll created a series of drawings as part of an online awareness campaign for Mental Health America to visualize what #mentalillnessfeelslike. Their campaign encourages people to open up about their conditions and harvest the power of sharing.\n\nA related approach can be found in the various devices that exist to simulate old age. Suits like \u2018GERT\u2019 are designed to make the wearer feel the impairments that come with aging: stiffness and limited mobility, decreasing strength, blurred sight, muffled hearing. The concept was originally developed to enable caretakers of elderly people to better understand the needs and fears of their patients. Now, gadgets with similar effects, designed by students at Weimar University, are being exhibited at the Hygiene Museum in Dresden, allowing the public to gain the same understanding.\xa0\xa0\n\nIn general, public exhibitions are a valuable source of inspiration when it comes to reaching people and conveying information. A prime example is the \'Happy Show\', set up by design firm Sagmeister & Walsh. Verging somewhere between art and education, the show throughly explores the theme of happiness in a graphic, creative and interactive manner. Another show that encourages people to actively engage with the exhibit is Erwin Wurms \'Bei Mutti\'. Visitors are isntructed to interact the artefacts on display, effectively becoming a piece of the art themselves.\n\n\nf9e1fc54827667adbc6d98f8ac208de7_1.jpg1920x1080 577 KB\n\n\nPROJECT PROPOSAL\n\nIn order to achieve our goal we propose a combination of an interactive exhibition and an information booth. This pop-up stall can easily be set up at universities events like open days and conferences.\n\nWe will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one\'s body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three.\n\nThose who are\xa0brave enough to test our simulators will receive a positive feedback. They will get to choose between 3 gifts: Stickers that encourage everyday task such as: "got out of bad", "took a shower" and "washed my laundry" in order to demonstrate how difficult these tasks can be to certain people. They could also choose comforting cynical tea bags that they can grant a friend in need on a rainy day or shit shaped chocolate pralines to compensate for the horrors they have just been through. The exhibition will also include an interactive board in which participants can share their feelings caused by the simulators or just generally and a second board presenting useful information regarding mental issues: how to identify, approachable treatments, support groups and other solutions. The first exhibition will take place during Berlin University of the Arts Semester end\'s exhibition and we hope it will continue to other universities around berlin and even in other cities in Europe.\n\nIf you hope so as well you are welcome to join us in a number of ways:\n\n\nSupport our Startnext campaign going online July 20th! Help us fund the first ever Shit Show and enjoy our moody merchandise (link tba)\nSpread the word! Our first intention is to raise awareness of mental health issues. Please share our ideas and solutions, you might even help someone.\n\n\n(It will also be nice if you would share our Startnext campaign once it\'s up \n\nParticipate our research, tell us how you feel when you are down in our survey or just share with us your Ideas and comments. We would love to hear some feedback and improve our project\n\nPauline Schlautmann: p.schlautmann@udk-berlin.de\n\nOmri Kaufmann: omri207@gmail.com\n\nThe production of this\xa0article was supported by Op3n\xa0Fellowships\xa0-\xa0an ongoing program for community contributors\xa0during May - November 2016.', u'entity_id': 511, u'annotation_id': 12336, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I\u2019m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling?\n\nFES - short for functional electrical stimulation - can be used to activate paralyzed muscles by impulses imitating the nervous system in the most natural way possible. We have come a long way with our research and it is possible to use this technique to let people with paralyzed legs cycle again. For some reason there are very few people who know about this so I\u2019d like to share this knowledge with you.\n\nWe cycle to move, but also to maintain fit. It can be both fun and functional. But, if your legs don't obey you anymore, you will probably not consider it a possibility. Paralyzed legs can result from an accident breaking your back, a stroke or a sneaking disease like the multiple sclerosis. \xa0\n\nPeople caring for and curing you need to be very pragmatic, and you with them. Mobility then becomes reduced to passive transport, a dietetic approach to avoiding getting fat and medication of pressure sores and other side effects from lack of physical exercise. That\u2019s where the publicly unknown FES research comes into play. Years of clinical research have consolidated the benefits, but we need to spread the news and understand more about it. Some people may already have heard of handbikes. They allow you to cover greater distances than manual wheelchairs. They are special tricycles where you use the hands for pedaling.\n\nFES, on the other side, is applied via adhesive electrodes or incorporated in bicycle shorts. The stimulus activates the muscles of the buttocks and thighs in sync with the ride. \xa0However only the leg muscles can challenge the cardiovascular system to get physically fit. Some people with for example spinal cord injury (paraplegia) may be able to use FES for activating these large muscles. \xa0With FES cycling they can cover greater distances with greater speed and due to activation of large muscles they get (bene-)fit and feel physical well-being. The research community has tried to promote a more widespread use of FES cycling by arranging races (see here) and publications with the user's statements of the pros and cons\xa0(see here).\n\n\nbb.jpg1122x520 409 KB\n\n\nHow can we build research into practice or at least make options much more accessible?\n\nThe question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community\n\nEven handbikes which are more popular can\u2019t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients.\n\nMy own group\u2019s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: \u201cThe FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living\u201d.\n\nWhy should you, me or anyone care about the future of research? you want to see your tax money spent well, don\u2019t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.", u'entity_id': 759, u'annotation_id': 12335, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Engineering meets biomatter. The squiggly squishy, compliant bits of biomechanics allow you to produce one size fits all. If someone has physical disability, like cerebral paulsy, giving them a little bit of improved mobility can have huge positive effects.\n\nFunctionally grated structures:\xa0Inspired by Bird beaks: Hydrophobic proteins and high water content parts of the body.\xa0\n\nExample where functional grating is applied: Cerebral palsy\n\n\nCost of therapy is very expensive because one on one time with specialists are very costly, and tech used is not modifiable.\nso they build soft exoskeletons for actuators (for joints) using functional grating principles. Check out their "Neucuff"\n\n\nAnother example where functional grating is used: Prosthetics\n\nUses distributed force: see goats\' feet as a reference/description of the principle used to build prosthetics.\n\n\nFeets that are hard metal pads (hard actuators) does not allow you to compensate for unexpected events.\nAlso flies\' spatulated hairs on their feet. N++1. Aron Parnell tries to mass manufacture.\n\n\nLast example: Replacing atmospheric preassure in space suits with pneumatic preassure, shrinking them to fit human body. Problem: Spring effect. Solution: Don\'t make mechanical counterpressure suit in one go, but gradually? (not sure I got this right)', u'entity_id': 5136, u'annotation_id': 12334, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'PocketFinder\xa0\nReceives GPS location data from multiple satellites. PocketFinder sends GPS location as frequently as every 2-minutes through cellular network. Cellular carrier sends encrypted data to PocketFinder servers. End-user logs in to account using smartphone, tablet, or computer. End-user can manage everything for PocketFinder using smartphone. When PocketFinder goes in or out of zone, Alert is sent to end-users via text, email, & push notification.\nRevolutionary Tracker\nhttp://www.revolutionarytracker.com/', u'entity_id': 777, u'annotation_id': 6511, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"I dug up some specs of the device (approximates) that Federico shared:\n\nUp to 20 liquids in- and output\nRun program to get a droplet from the liquid: 300nl-2\xb5l depending on size of device\nTemperature goes from 4\xb0C to 95\xb0C, so you could run a PCR and anything in between (eg. cell incubation at 37\xb0C)\nMagnet to do purification (unsure about this)\nThey're planning to add fluorescence detection (months in the future)\nIt should be possible to do everything on the chip: transformation, cloning, selection, screening, ... Also planning to add electroporation.", u'entity_id': 6291, u'annotation_id': 6510, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale\xa0groups working in distributed fashion\xa0to experiment with and produce other biologics.\nWe're very near to reaching our first milestone of producing and isolating proinsulin, after which we'll be redoubling our efforts to develop a simple, end-to-end protocol to produce insulin. We've had several collaborators join our effort in the meantime, including a group at ReaGent in Belgium, another at Biofoundry in Sydney, and another here with us in the Bay Area at Fair Access Medicines.\nWhat have we learned a", u'entity_id': 859, u'annotation_id': 6509, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'In our previous post, we concluded that nobody had really ideated SoundSight all alone\u2026 no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models.\nAt this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product.\nThe first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them.\nThe team worked hectically on Irene\u2019s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.\n\xa0\nLet\u2019s leave it again to Irene\u2019s recollection:\nIrene: \u201cHello Mario[1], we are here again\u2026 this time I promise you will be impressed\u201d\nMario: \u201cHi Irene, it\u2019s a pleasure\u2026 and rest assured, last time I was already impressed, although maybe not as you hoped for\u2026 with my friends we have been laughing a lot about your engineer\u2019s idea of a prototype!\u201d\nIrene: \u201cOh no, Mario\u2026 don\u2019t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things\u201d\nMario: \u201cDon\u2019t worry Irene, I have only told the story to one or two\u2026 hundreds of people\u2026 ahahah!\u201d\nIrene: \u201cDoh! \u2026ok Mario, then to pay you back, today\u2019s text will be extra tough!\u201d\nMario: \u201cI am ready for the challenge!\u201d\n\xa0\nIrene sets up the simulation\n\xa0\nIrene: \u201cOK Mario, it\u2019s ready. I would like to ask you to try the first round without me sharing with you any information\u2026 I want you to focus on your impressions only, tell me how it feels\u201d\nMario: \u201clet\u2019s start\u201d\n\xa0\nThe simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click\n\xa0\nMario: \u201cIndeed there have been a lot of improvements, it is smooth now\u2026 last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click\u2026 are you sure these are simulations?\u201d\nIrene: \u201cYes Mario\u2026 we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks\u2026 we are just not there yet\u2026 you are one of our very early testers, and I cannot thank you enough for that\u201d\nMario: \u201cDon\u2019t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user\u2019s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments\u2026 but I haven\u2019t been able to identify where I was.\u201d\nIrene: \u201cThat\u2019s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them\u2026 you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?\u201d\nMario: \u201cIt\u2019s difficult to tell you more from just this\u2026 maybe we can move to the next exercise?\u201d\nIrene: \u201cYes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks\u2026 try to guess what it would be\u201d\nJust a quick run of the new scenario on the simulator\nMario: \u201chmmm\u2026 the smoothness has improved a lot\u2026 but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?\u201d\nIrene: \u201cI had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral\u2026 now that I have told you, could you confirm it or would you still be doubtful?\u201d\nMario: \u201cLet me try to listen again\u201d\n\xa0\n\u2026the simulator runs again shortly\nMario: \u201cYes Irene, now that I know, it could well be\u2026 I had some doubts, with no context it could have been a theater or a large gym, \u2026\u201d\nIrene: \u201cIndeed\u2026 now I would like you to do a few exercises\u2026 I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features\u2026 later there will be a test\u2026\u201d\nMario: \u201cFor me or for the software?\u201d\nIrene: \u201cFor both, Mario, don\u2019t try to escape your responsibilities\u201d\nMario: \u201cAhahah\u201d\n\xa0\nThey run the training set\nMario: \u201cWell Irene, we will see how I perform later\u2026 but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users\u2026 it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn\u2019t add up\u201d\nIrene: \u201cYou are right. Together with the real-time acquisition of users\u2019 clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface\u2026 or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough\u201d\nMario: \u201cYou would need a lot of needles to offer a useful interface\u2026 you can try prototyping something quick maybe with Arduino\u2026 but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.\u201d\nIrene: \u201cWe will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional\u2026 and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break\u2026\u201d\nMario: \u201cWhat break? Are you not letting me off yet?\u201d\nIrene: \u201cMario, let\u2019s just take the test before the coffee\u2026 I will let you off then, for today\u201d\nMario: \u201cOk, ok\u2026 a no is not possible anyway, isn\u2019t it?\u201d\nIrene: \u201cIt\u2019s always possible, but I will insist with a smile\u201d\nThey run the tests\nIrene: \u201dif we compare today\u2019s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!\u201d\nMario: \u201cBut Irene, how can I be sure if I have truly learned? I mean\u2026 we should arrange tests where there are coupled with some sort of benchmark\u2026 maybe similar tests in real world, you could imagine a mobile lab to do so\u2026 or even just arrange competitions among users\u201d\nIrene: \u201cThat\u2019s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being\u2026 do you think your partner would like to try it out against you?\u201d\nMario: \u201cBut she sees\u2026\u201d\nIrene: \u201cit should not be an advantage, and I promise you I will not show her the screen\u201d\nThis is now a different story\u2026 but after being initially baffled, Mario\u2019s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill.\n1\xa0Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture\u2026', u'entity_id': 578, u'annotation_id': 6508, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"August 2016, Breathing Games took part to the Open & Change Care application to MacArthur's Foundation.\nApril 2017, we were selected for a two-weeks residence in Milan, organized by EdgeRyders, WeMake and OpenCare.\nWe document our residence in following spaces. Feel free to contact us to contribute!\n\nMain document\nRepository\nSource code (GitLab)\nImages\n\n\xa0\nFurther articles on EdgeRyders\n\nWorldwide, 1 in 5 people has a respiratory disease...\nIs community-based and participatory health care sufficient?\nSENSORICA and health care\n\nOther threads on EdgeRyders\n\nMaker in residence \u2013 Open call\nMaker in residence \u2013 Welcome\nOpenCare\nOpenCare research project", u'entity_id': 870, u'annotation_id': 6507, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'On Wednesday 31st of May there was the closure of the CALL FOR MAKERS | opencare Maker in Residence. \xa0\nThe application process wasn\u2019t easy at all! It required three main steps. The reason why of this process lies on our opencare vision: we strongly believe that a collaboration is also possible within online and offline communities, composed by professionals, doctors, researchers, practitioners, economists, social media experts, designers, activists but also real users, citizens, people with special needs, students, makers, tinkers and many other stakeholders interested in building encounters.\nBy clicking on this link you can read all the stories \xa0which applied to the MIR within the 3 topics : \xa0\n\n\nHacking and making\n \n\nHealthcare and social care\n \n\nOpen science and technologies\n \n\nAllright makers, time to stow the gab and announce the accepted projects.\nThe opencare team, based at WeMake, is glad to announce that the following projects will be officially part of the first edition of opencare Maker in Residence:\nWeHandU |\xa0\nThe Question: \nPerform simple and everyday tasks independently.\nThe Problem: \nA person with amputee hand and locked elbow.\nThe Solution: \nA helping device held in the hand, capable of interacting with multiple items\nContinue to read the Story of WeHandU on EdgeRyders.\n\xa0\nReHub | by Mauro Alfieri and Sara Savian @reHub\nThe Question: \nIs there a quantitative tool to monitor the hand rehabilitation?\nThe Problem: \nThe lack of a tool able to provide a digital feedback on the progress of proprioceptive physiotherapy.\nThe Solution: \nA wearable glove that can record and transmit data thanks to a sensor system.\nContinue to read the Story of ReHub on EdgeRyders.\n\xa0\nResQ | by Luca Tarasco Nushin Alishahi Emanuela Pucci Francesca Previati @resq\xa0\nThe Question: \nHow to help refugees in getting a more efficient healthcare service?\nThe Problem: \nLanguage barriers often lead to misunderstanding and psychological weight for foreigner patients.\nThe Solution: \nResQ is an app that connects physicians over common patients, providing a complete overlook to minimise language barriers.\n\xa0Continue to read the Story of ResQ on EdgeRyders.\n\xa0\nBreathing Games | by Fabio Balli, Povilas and Duglas\nThe Question: \nHow to ensure that (lifesaving) health innovation benefits all?\nThe Problem: \nCompetition and copyrights hinder the free use and adaptation of health innovation.\nThe Solution: \nWe co-create knowledge and technologies that can be used and adapted by everyone, in all countries.\nContinue to read the Story of Breathing Games on EdgeRyders.\n\xa0\nAllergoKi | by Nicoletta Faltracco and Monica Zambolin\nThe Question: \nThere are a lot of people with food allergies and/or intolerances, that too often are forced to renounce to have dinner outside because they are afraid to feel bad.\nThe Problem: \nPeople with food allergies and/or intolerances feel immense embarrassment every time they have to tell their health condition.\nThe Solution: \nAllergoKi wants to create a visual/tech \u201csystem\u201d placed in the restaurants or any food court, in order to have a comfortable and convivial atmosphere for anyone.\nContinue to read the Story of AllergoKi on EdgeRyders.\n\xa0\nIn the next days we are going to meet each team, in order to set a specific schedule in terms of calendar, resources, activities and much more.\n\xa0opencare Maker in Residece | WeMake team', u'entity_id': 865, u'annotation_id': 6506, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'hat -for instance- the ramp \u201cbell\u201d to call who is inside the shop, is mentioned only once on the website of the Municipality and is an important part needed to communicate between the customer, that might be someone who needs to access by a wheelchair, or a mother with a baby buggy.', u'entity_id': 850, u'annotation_id': 6505, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Community Conversations can have an impact in various ways, from discussing challenges, catalyzing collaborations or changing the direction of the project and creating new initiatives.\nThis was the case for Sara\xa0Savian\xa0and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.\xa0 It allows the patient to record and report exercises, data- such as hand position and fingertips pressure.\nIn 2014 Sara\xa0Savian\xa0and Mauro Alfieri started their journey with a \u201ctest on sensors \u201cand they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.\xa0 The intent was to explore how it can be used? How can it add value and be of use socially?\xa0 What could be built on this foundation? These discussions could change the course for many participants.\nSara and Mauro not only had many questions answered, but they left with the idea of going back to the drawing board and creating something that would be beneficial to society.\nA conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can\u2019t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.\n\xa0We asked Sara to recollect this conversation:\nJohn: "I suffer from a hand disability that limits my activities of daily life. Self-sufficiency is greatly reduced and hinders the quality of life for me. Constant monitoring of my movements and joints must be done frequently to evaluate my progress by and going back and forth as an outpatient for evaluations. This interferes with my daily activities\u201d*\nPhysiotherapist: \u201cThere has been an advancement in technologies in the rehabilitation to help patients achieve maximum recovery outcomes. In Italy, physiotherapists have no access to digital tools to evaluate rehabilitative progress for hand movements. Having instant access to this therapy anytime would be greatly beneficial.*\nWe asked Sara and Mauro how this conversation altered the course for reHub.\nSara: \u201cThis made us re-evaluate our project in a variety of ways and prompted us to think in broader terms and combine the "test on sensors" with solving a problem. We know that there is a lot of learning that needs to be done when you put the device in the hands of people that are just things you would not expect".\xa0\nMauro: From this discussion, Sara and I saw the opportunity offer a solution and an experience of an emerging area of wearable technology together with the sensing technology and decided to create a device that could be delivered in a rehabilitation approach to support patients\u2019 and to monitor hand rehabilitation. From listening to challenges that are faced on a daily basis, and realizing how painful it is for the patient and family. We need to work with them to help co-create with us\u201d.\nWith the project in its early stage, Sara wanted to share this:\nSara: \u201cThere is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.\u201d\nWe asked what\u2019s next for reHub.\nSara: "We know that rehabilitation is time-consuming and demotivating and we plan to change that with a reHub device to empower patients through their therapy. Rehabilitation is often costly, by making it open source, it\u2019s affordable and accessible for people who are living with limitation and this could drastically improve their mental well-being during the road of recovery\u201d. This will allow the vast majority of patients to be sent home with a rehabilitation program to practice on their smartphone or tablet."\nThe reHub team is taking a broad approach in this area and looking for users and a community that will benefit and help develop different options: sport, gaming, educational, medical.\nWhy is it important to work with the community to further develop reHub?\nSara: "Spending time with a community, or patients that will benefit from what you\u2019re creating is looking at the problem in a human-centered way and it highlight\u2019s what\u2019s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we\u2019re back to the drawing board. We need to know what from the user\'s perspective so we can design with them in mind."\nCo-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily. \xa0When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented.\nMauro Alfieri: \u201cWe thank all the physiotherapists we have had a chance to meet with \xa0which could effectively confront the future of this project, orienting it to a continuous use in proprioceptive physiotherapy."\nIf people can\u2019t achieve expected results due to a design issue or flaw, then that\u2019s obviously going to have a clinical impact. From a functional aspect, understanding how people use things does matter. This is where engineering, design and the community will benefit and need to work hand in hand to understand these components. It\u2019s crucial to consider human emotions when designing medical products. Often, it\u2019s the emotional connections that people have with respect to the design. Is it flexible? The weight, how it feels, is it aesthetically appealing?\nThen, of course, cost and accessibility that make people gravitate toward certain devices as opposed to others. With the joined forces of diverse backgrounds of Sara and Mauro, reHub will be addressing all these concerns.\nreHub-goal-oriented effective rehabilitative treatment and experience that will help patients return to family, job, community and resume regular daily activities.\nMore updates to follow.\n*The name of John and Physiotherapist have been used to maintain privacy.', u'entity_id': 861, u'annotation_id': 6504, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"It's important what you say about how we can become precious about the problem and lose sight of the people. There's something very meaningful in your description of the mother's response to technological solutions. Did\xa0the insight\xa0about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might\xa0design technological responses that generate more human connection rather than displace it?", u'entity_id': 8467, u'annotation_id': 6503, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'Can we design interventions offer workarounds to the obstacles these intiatives, and the indivuals they attempt to support (caregivers and care recipients)? What forms could these interventions take in order to unlock more care in the different situations (artefacts, communication, services, processes, upskilling, administrative and legal hacks, policy changes and or something else? Here I think the ingenuity and very particular skillset of Costantino, Zoe and others in the weMake constellation could make a very important contribution.', u'entity_id': 5479, u'annotation_id': 6441, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'identifying and understanding where they could make meaningful design interventions (products and or services).', u'entity_id': 26011, u'annotation_id': 6453, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'Then shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you "deliver" like a pizza.', u'entity_id': 10231, u'annotation_id': 6454, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc? Affordable, modifiable technologies are required to manage the current crisis as well as to secure peace in the region.', u'entity_id': 5234, u'annotation_id': 6455, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'what can we as designers do? designing not only objects, but situations, society\ndesigning society.\nhow can we create a community where everyone respects each other? helps each other?', u'entity_id': 651, u'annotation_id': 6456, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Researcher Jos\xe9 G\xf3mez-M\xe1rquez whose big thoughts shapes Little Devices", the lab he directs at MIT-\xa0uses toys to make affordable medical devices.The Little Devices lab takes a DIY approach to designing and building tools, mainly for healthcare.\xa0 \xa0A plastic gun can be to create an alarm that alerts nurses when a patient\u2019s IV bag needs changing. And a box of Lego-like building blocks can be used to modify existing medical equipment in numerous ways. He creates devices that bridge the gap between absence of mechanical or electrical engineering or fundamentals of\xa0product design. Marquez talks about that toys can be the engineered piece or the mechanical bits and pieces that you can harvest and re-purpose.\xa0G\xf3mez-M\xe1rquez happens to have the backing of MIT, yet he is joined by a large and often-unrecognized population of DIYers who are practicing low-cost innovation. Historically, the public has looked to research and development labs at multinational corporations, universities and government labs\u200a\u2014\u200aand has grown accustomed to expensive, complicated devices used more often in elite hospitals than jungles or slums. Not surprisingly, those who make DIY medical devices encounter doubt and even derision constantly.\xa0Such attitudes are a problem, because the DIY tools dreamed up by backyard inventors, part-time tinkerers and academics like G\xf3mez-M\xe1rquez could improve \u2014 and even save \u2014 thousands of lives everywhere, not only in inner cities but\xa0in communities\xa0everywhere. We need to toss out our false assumptions about how, and where, new ideas come from \u2014 and recognize that innovation is everywhere.', u'entity_id': 707, u'annotation_id': 6457, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'little gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth.', u'entity_id': 703, u'annotation_id': 6458, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'With the creative potential, the only problem lies in the lack of tools and materials.\xa0To see what would happen if material were available, we made a little experiment where\xa0we brought basics like duct tape, cable ties, string and durable cardboard and looked\xa0what they would think of building intuitively. Despite scepticism in the beginning, it was\xa0beautiful to witness the moment when everyone in the room joined to figure out the best\xa0construction for a wall-mounted shelf, built with mortise and tenon joints. The fact the\xa0project was dealt with in such a manner, shows the willingness to engage these kinds of\xa0challenges with seriousness and a certain claim to quality and that it is not only about\xa0practicality and pure function, for such a shelf could have been easily assembled withjust tape and cardboard. It was fun for us to join the working process and thinking with\xa0them about the construction and making, but more importantly, it was fun for them to be\xa0challenged in making something useful and to make that beautifully. Mohammed, who\xa0came up with the idea of using joinery, later joked saying he would love to make such\xa0shelves for the whole camp - and we hoped, it was not merely a joke, but a mentality that we\xa0could continue to work with. In fact, we left all the spare materials in their rooms and by our next visit they had built another two shelves and a small storage for clothes under one of the beds.', u'entity_id': 703, u'annotation_id': 6459, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'I\xa0feel the\xa0need for strange networks of care:\xa0unusual, compelling networks that don\u2019t attempt to fix anyone but make healing and self-understanding an adventure and help individuals back into the simple joys of communion and creativity. To\xa0explore\xa0group dynamics and coherence in\xa0recent projects I\u2019ve been involved in, I\'ve worked with beans http://www.rootbeans.com/, with dreams (following the method of my mentor Apela Colorado) http://oneiricarchives.tumblr.com/\xa0and with storytelling http://www.thehaguecenter.org/pathways-project-2/. \xa0Back up in Liverpool we\'re improvising on Stafford Beer\'s work on group dynamics in public meetings. Whether it\u2019s VR group therapy where you experience your own body and other people in highly unusual ways or group Skype rituals for reconciliation the whole notion of care networks is wide open for innovation and renewal.\xa0As a guiding design point I think the only answer to questions like how can ritual time be held online or how can digital networks provide the intensity of feedback of live interaction is bold creativity. If you have examples of\xa0creative online\xa0systems to faciliate group communication and support\xa0that go beyond a\xa0message board or online forum and become something more vital and "live" please share them.\xa0 I\u2019ll be at 33C3 if there\u2019s people from the Edgeryders community who want to meet around the\xa0theme of hacking\xa0strange networks of care. There\u2019s also an option to organise a session: https://events.ccc.de/congress/2016/wiki/Static:Self-organized_Sessions', u'entity_id': 553, u'annotation_id': 6460, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'You can then get the recorder to this person (or have the person respond via a phone recording in a "relatively 1st world context") and document things in long form (8 GB - up to a week). Parts of this will be amiable for speech to text conversion. ( @brenoust that is why I asked the last time we talked)\nOnce you get the text corpus you can open it up the the digital domain ( @Amelia can then probably mine this from an enthnograpic/anthropologic perspective) while it can remail fully anonymous. I also have a concept in mind for quantitative feedback which is similarly simple tech for users (colored beads on a string) but machine readable.\nThat way you get quant + qual abstractions but you can still jump to the original content fairly easily (provided you speak the language). It ought to scale quite well, especially if you can reuse some of the players.\nThe motivation for this came from a number of directions (OLPC griping, importance to capture emotion in human interaction, World Bank issues/capability building (two way!)) so I\'ve played through a couple of different concepts that can perhaps be divided by organizational/technical aspects, content/didactic aspects, and info flow direction/volume.\nI\'m currently working on putting together a prototype kit that could plausibly run for a couple of months (and with minor support perhaps years) as a replacement for a "sit-in school" in remote areas that have trouble with teacher absenteeism (', u'entity_id': 26057, u'annotation_id': 6461, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'The way it works is ver simple: they pierce the ground with thin funnels that "suck in" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don\'t get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.', u'entity_id': 26045, u'annotation_id': 6462, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'The way it works is ver simple: they pierce the ground with thin funnels that "suck in" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don\'t get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.', u'entity_id': 26045, u'annotation_id': 6463, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'In the current phase, Inpe, is designed as an arm band, similar to the ones runners put around their upper arms to hold their phones. \xa0\xa0It comes in two buttoned layers, where it is easy to see the inside components, tweak, and fix. The same items could be used on the leg too. For the next iteration, we would love to keep the same idea of making the inside as open and as accessible as possible.', u'entity_id': 6068, u'annotation_id': 6464, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Would it be possible to think of a mechanical system that can be attached to all \u201cstandard\u201d wheelchairs, \xa0that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits? \xa0\xa0Any thoughts?', u'entity_id': 689, u'annotation_id': 6465, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'They are taking a different approach in asking how to create environments which are \xa0\xa0\xa0inclusive by design and not by label.\nSomeone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them.\xa0They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This\xa0allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.', u'entity_id': 8631, u'annotation_id': 6466, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'Though wheelchairs not my speciality I have seen several solutions presented by scholars. For example:;\xa0Stairclimbing see:http://portale.siva.it/en-GB/databases/products/isoSearch?classification=122315 (so the NHS\xa0offers zero)\nIn theory its simple:\xa0https://www.youtube.com/watch?v=ik286spRM1w\nwhy dont you just buy one of these?\xa0https://www.youtube.com/watch?v=AaZLoUYXDSs or\xa0https://www.youtube.com/watch?v=O7otewMk9pc\n( I actually saw one on the street the other day) Who dares hack a segway? And who dares using it?', u'entity_id': 26020, u'annotation_id': 6467, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'There are many ways and materials to improvise these from (https://en.wikipedia.org/wiki/Salt_dough ASIN B00O0PRFHM paper or clay (perhaps "non-firing") and number punches ( B01M1VBFNS )).', u'entity_id': 26056, u'annotation_id': 6468, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u"The device has been designed to allow (and/or complement)\xa0simple shoulder and elbow movements (namely: shoulder abduction/adduction, shoulder flexion/extension, elbow\xa0flexion/extension). The main idea behind its development is that of enabling its use directly at people's homes, in order to allow intensive sessions directly in activities of daily living.\xa0As such, it could be used in several scenarios, from rehab to assistance. The main differentiator wrt such scenarios would/could (mainly) be the user-interface.\nIn the simplest\xa0case, the device could be programmed (by a physician, physiotherapist etc.) in order to mimic/repeat a predefined set of motions over and over again in order, for example, to avoid the undesired consequences of limbs immobilization (contractures, poor blood circulation etc).\nIn a rehab setting, for example post-stroke, the exoskeleton's motions could be derived by decoding user's intention via physiological signals (mainly EEG, EMG). In this case the basic idea would be to allow the user to complement or slowly re-gain control over his flaccid/weak arm and discontinue its use once the user does not need it any longer.\nIn an assistive setting, for example post spinal cord injury or in myopathies, the exoskeleton's motions could be derived as before or chosen from a simple interface (e.g. smartphone, joysticks etc.) in order to provide assistance-as-needed, whenever the user wears\xa0the device.\nIn a case like the one you've mentioned the device could indeed be used, not to help but rather to (selectively) resist the movements. By customizing some parameters to the user's needs/residual abilities, one could enable\xa0specific trainings in order to work on specific ranges of motions, torques, joints/muscles combinations etc. Such parameters/programs could be also updated by a physician, or dynamically (by the device itself) by inferring correlates of muscle-fatigue, achievable range of motions etc.\nIn all the previous scenarios, as specified by @Noemi, data related to the user's progress could be collected and analyzed, for the sake of monitoring and improving the therapy itself.", u'entity_id': 13646, u'annotation_id': 6469, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'A couple of years ago i participated to a contest called \u20185 voor 13\u2019 that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don\u2019t visit grandma anymore because she is to old\u2026\nFor my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together.\nI grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn\u2019t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I\u2019m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my \u2018m\xe9m\xe9\u2019 stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.\n\xa0\nSo when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii\u2019s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?\nWell you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together.\nAfter presenting this project i finished third and got 500 euro\u2019s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.\xa0 I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.', u'entity_id': 783, u'annotation_id': 6470, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Hello everyone,\xa0 as Wemake we would like to share more research around existing products that align with the concept of care.\xa0\xa0 This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.\xa0 Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.\xa0 The posts to follow will elaborate on different technologies applied in open projects around the theme of care.\n\xa0\nMaestro\nAbout:\xa0 Making your own finger mounted input device to control the cursor.\nCountry: USA\nYear: 2015\nBy: Jonggi Hong - student of the course \u201cTangible Interactive Computing\u201d taken by Professor Jon Froehlich at the University of Maryland, College Park. \n\xa0\nIt is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course "Tangible Interactive Computing" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers.\nHow is it open?\n\n\nMaestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic).\n \n\nAnyone can clone and fork it.\n \n\nSource code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though: \n \n\n\xa0\n\xa0BOM\n\n\nArduino Pro Mini https://www.sparkfun.com/products/11113\n \n\n9DOF IMU sensor stick https://www.sparkfun.com/products/10724\n \n\nCopper tape (or any other small conductive material) \n \n\n3 resistors (1~10 mega ohm, big resistance is better) \n \n\nWires, tape \n \n\n3D printer\n \n\nLink: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/\nhttps://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es', u'entity_id': 512, u'annotation_id': 6471, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'2. Some years ago i converted an old\xa0pc mouse into a "finger extensometer". Drilling a hole, springloading the optical encoding wheel wrapped with some fishing line. The line goes out though the hole and\xa0in the other end it was attached to a rubberring. That ring could be put on the e.g. index finger.\xa0\nThe idea was to solve a clinical issue with a tool for the physiotherapist\xa0training fingerextenstion of the impaired hand. (The typical hemiplegic hand after a stroke). Either the user could get a biofeedback when exercising finger extension, or it could be an evaluation tool to keeping track on the progress by providing objective measurement of amount of finger extension.\nIf this \'Maestro\' can do this task and if it is really easy to clone it could be a good candidate for this work (http://ifess.org/node/824). Currently there are some protocols (using expensive movement analysis labs), but if this could be a <50\u20ac DIY instrument for a OpenCare\xa0rehabilitation it could be great.\nAnyone wants to continue the work? Who can make a pilot case study with a patient? (A validation of repeatability,reliability and correlation with a golden standard). \xa0Stuff for an article (https://edgeryders.eu/en/opencare-research/quality-of-life-technologies-an-opportunity-for#comment-24005)', u'entity_id': 16244, u'annotation_id': 6472, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'Where:\nHungary\nWhen:\n2013\n\xa0\nWho:\nR\xf3bert Csord\xe1s, Gergely Jo\xf3s, Tibor Szab\xf3\n\xa0\nAbout:\nMobilECG is an opensource clinical ECG. It is designed to record with 2 to 10 wires for up to 5 days. The device can be connected to a mobile device wirelessly.', u'entity_id': 762, u'annotation_id': 6473, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'From Maison Du People to Huis VDH, a story about citizen centred design.\nSince I was a guide and learned about the architect Horta and his Art Nouveau Style, I\u2019m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks\u2026\nI gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn\u2019t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented.\nSo there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born.\nIt\u2019s all in the name, for Huis VDH it is no other. \u2018Huis\u2019 means \u2018home\u2019 in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: \u201c that the power of a community is bigger than the sum of all parts.\u201d\nOne big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.', u'entity_id': 520, u'annotation_id': 6474, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Epoxy is not cheap (unless it is a day over shelf life - ask around at boat builders or wind power manufacturers, perhaps in Rostock) but it can get a lot of stuff done. If you put some glass fiber (ask the same people for scraps) on the cardboard honeycomb it becomes very strong (but only moderately so in compression).\nYou should not work where people live, and have good ventilation (wear glasses, gloves, read the fine print), but composites experience is very marketable, especially if you can work clean and precise.\nIs there magnetic stuff around (bed frames, parts of walls)? If yes you can buy a big batch of magnets (the strong ones are neodym) and use them to fix wall paper, fabric or similar. They can be pretty small and cheap and still get a lot done, also for improvised electronics.\nDo people use batteries a lot? Perhaps you can switch to rechargeable - with some help from Panasonic? You can build powerpacks for mobile electronics. A very basic kit will let you do a Repair Cafe and bring in more tools and parts (talk to Ifixit.com). A small amount of epoxy will also come in very handy there.', u'entity_id': 27795, u'annotation_id': 6475, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'Where:\nBarcelona, Spain\nWhen:\xa02014\nWho:\xa0Mauricio Cordova\nFew lines description:\n\n\nIs it a device / software / service\n \n\nFairCap is a device produced with open source technologies.\n\xa0\n\n\nType of community involved (elders, deaf/blind/autism\u2026 disability, etc)\n \n\nThe project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don\u2019t have access to drinkable water and therefore are characterized by premature deaths due to this reason.\n\xa0\n\n\nHow big is the community involved\n \n\nWhat is the solution proposed\n\n \n How is the project currently affecting users\u2019 life?\n  \n\n\n\nFairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users\u2019s life.\n\xa0\n\n\nIs the project developed or still in the development phase?\n \n\nThe project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$.\n\n\nAre there similar projects or attempts to solve the same problem?\n \n\nThere are several: SolarBag \xae (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)\n\xa0\nWhy:\n\n\nHow is it open?\n\n \n What kind of license did they use to publish it? (links to documentation/repo are welcome)\n  \n\n\n\nFairCup is completely open source, available to download and released under Creative Commons licence.\n\n\n\n \n Can you clone/fork it?\n  \n\n\n\nYes\n\n\n\n \n Is it freely available?\n  \n\n\n\nThe source files are downloadable for free\n\n\n\n \n Is it affordable? (please compare)\n  \n\n\n\nThe estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters.\n\n\n\n \n Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?)\n  \n\n\n\nThe founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.\n\xa0\n\n\nHow does it \u201ccare\u201d?\n\n \n Does it solve a medical issue?\n  \n \n Does it solve a social issue?\n  \n \n Does it solve an everyday issue for a specific (disadvantaged) community? \n  \n\n\n\nYes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.\n\xa0\nLink: http://faircap.org/\nhttp://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/', u'entity_id': 33728, u'annotation_id': 6476, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Where:\nItaly\nWhen:\n2013\n\xa0\nWho: Marco Sangiorgio, Vincenzo Iadisernia, Antonio Ianiero (Unterwelt)\nTweet:\nUGO is a home automation system which allows users to control home devices through speech recognition technology. Few examples: turn on and off the light, lift or lower a rolling shutter, signal gas leak, exc.\n\xa0\nSimilar ideas:\n(http://hackaday.com/2013/08/11/voice-controlled-home-automation-uses-raspberry-pi-and-lightwaverf/)VoicePod (http://www.voicepod.com/videos/), AmazonEcho (http://www.cnet.com/products/amazon-echo-review/)\n\xa0\nLinks: \nhttp://www.unterwelt.it/ugo\nhttps://www.youtube.com/watch?v=j02W99Z8GNI', u'entity_id': 763, u'annotation_id': 6477, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Just to give an example: \xa0My mother suffered from a slipped disc so passing the vacuum cleaner was a low back pain for her. As a good boy I stated: "When I grow up mom, I\u2019ll invent a cleaning robot to do the job for you". Someone beat me to it - the cleaning robot is a reality - it sells well, and substitutes the socializing cleaning woman once offered to the elderly. I see now that a cleaning robot is not what a mother really wants. She just wants a good boy saying: \u201cmom, I\'ll do that part of the cleaning with you\u201d, and do it right away.\nUntil doing my masters, the disabled people were an unknown phenomenon to me. They were not seen, not talked about. I was introduced to young people suddenly wheelchair bound with very limited personal independence due to a spinal cord injury. \xa0They were really nice people and kindly explained about the complexity of such sudden change in abilities and about the need to regain some functional movements.\nFirst of all they told me where my ideas were no good and what research needed to be done. Together we coined a method, not an ambitious cure, just a simple idea that could help a bit and during my Ph.D dissertation, we demonstrated feasibility of restoring the hand function using electrical activation of the paralysed muscles. Not a fits all solution and not perfect, but as people say: when you have nothing, a little is a lot, and for some people it works well (see the video)\nWe still research in restoration of walking in paraplegic patients and quite a few assistive devices have been marketed (braces, functional electrical stimulation and robots ).\nI have been active in the field for 20 years working at major rehabilitation institutions, but I\u2019ve only rarely seen patients being offered these assistive technologies and more rarely seen them \xa0used outside the hospital. Is the problem (as some people with SCI have entrusted me) that there is no such demand or \u2018new hope\u2019 for walking? After all, wheels are more efficient than legs - provided accessibility!!!\nAnother hypothesis could be an issue of lack of flexibility of the healthcare system, not beeing able to provide state of the art technology to patients !?\nStill, for more than forty years we continue producing scientific publications with conclusions like: \u201c\u2026the work carried out so far proves that functional movements can be restored...We therefore believe that patients can benefit. Further research should be carried out\u201d.\nPlease, don\u2019t get me wrong. The research contribute with important results, but obviously there is a problem of transferring the research results into the benefit of people with physical challenges.\nSo far business oriented people responds that it\u2019s because the solutions are not technically good enough, that they only fit a few thousand patients and we continue the research for enhancements to the technology and demonstrate clinically effectiveness.\nOn the other hand less ambitious solutions have been available since the 60\u2019ties, to alleviate the simple problem of foot drop. It applies to thousands of people living with stroke, multiple sclerosis or spinal cord injury. It\u2019s a little electrical device providing electrical impulses to the muscle that lifts the foot and I\u2019ve encountered many people with stroke and multiple sclerosis who gained significantly in mobility (see this user statement).\nDespite demonstrated clinical efficiency and the immediate advantages it\u2019s almost never proposed to the patients of the health care system (except for the UK [11]). Why???\nSo on the one hand we spend million dollar research to refine technology that is not widely used!!!!. Will our institutions and society implement the provision of such technology!?\nThey need one solution that fits many, because the modern health care model reduce human life in cost/benefit analysis to numbers. However, as long as assistive technology is not used it\u2019s difficult to identify exactly where to improve it. \xa0We know that consumers must be involved early in the development, it\u2019s difficult to do so in a realistic setting. We realize that marketing assistive technology is different than selling a robot vacuum cleaner.\nSo a relatively simple method of restoring the hand function in people having broken their neck (cervical spinal cord injury), that has been demonstrated useful in a large clinical trial has not become available to people who really need it because it does not fit the \u2018business model\u2019 \xa0of modern health care systems !?\nAs an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I\u2019ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970\u2019ies anymore. In the name of assuring \u2018quality\u2019, \u2018safety\u2019 etc, \xa0we need to manufacture, CE mark, register as a medical device and so on!. \xa0To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price. \xa0Why should people, already challenged economically by loss of health, spend 5-10 k\u20ac \xa0for a device that could be made much cheaper?\nThat\u2019s where the revolution of OpenCare \u2013with a subset of community driven provision of assistive technology - comes in.\nCould we leave people with a physical handicap to become a maker, create their own assistive technology?\nWould it be possible for, for example, researchers to help people living with a disability to hack a dropped foot correcting device like connecting an Arduino with an extension board?\nWill doctors provide indications of how to find the assistive technology, which might solve your health issue?\nThat would mean that people should take responsibility for their own rehabilitation devices. They would have full ownership. Clearly they must be guided by healthcare professionals and experts without conflict of interests to ensure that everything is done ethically, safe and sound. How?\nMaybe if we reunite people living with physical challenges with researchers they would both benefit and research becomes action and functionally useful to the society?\nWhat do you think?', u'entity_id': 516, u'annotation_id': 6478, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'After a very long research phase me and my team from Newcomer now have conceptualized a smartphone-app, which familiarizes not only refugees but any newcomers with their environment. Our team is working in the Hacking Utopia project at UDK (University of Arts) in Berlin. We are two product designers and two communication students.\nMain target group are refugees why we mostly talked to young men from syria. Of course they are facing a lot of problems and some are probably more serious tha the one we are trying to solve. We found out that -waiting for german bureaucracy to give them the needed papers and learning german- a lot of them feel lost in their new environment. Although our focus is on refugees Newcomer is for everyone, who is new in the city.\nOur App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Caf\xe9s and Eventspaces be a part of our project. So for example we lead a participant to a caf\xe9 and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience.\nSo our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment.\nMilan/Newcomer', u'entity_id': 699, u'annotation_id': 6479, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world\u2019s biggest project aiming at removing cataract for the poorest:\xa0through\xa0a ten minute microsurgery with\xa0articial lens\xa0implantation.\nThe project is extraordinary and has been documented in media all over the world. My favorite aspects of it are:\n\n\nThe lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece.\n \n\nThe surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands;\n \n\nHis lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars)\n \n\nThe doctor himself has cured around 120.000 people\n \n\nBy funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others;\n \n\nIn Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150.\n \n\nThis simple idea turned out incredibly effective and is tested now in other countries.\nhttp://www.cureblindness.org/eye-on-the-world/press\nhttp://www.tilganga.org/', u'entity_id': 709, u'annotation_id': 6480, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"What made you share this, @Pauline? What design do you have in mind for the mutual understanding platform you see as a solution? One initiative I came across while researching the web for the mental health debate in OpenCare is BlueHackers - they have an\xa0IRC channel\xa0they use where anyone can drop in for a random conversation.\xa0It could be that sharing with strangers is sometimes easier than with closer people, so you could be on to something. But maybe you're not thinking of online platform?", u'entity_id': 7523, u'annotation_id': 6481, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u'This is a story how a new initiative Soundsight Training promises help for blind and visually impaired gain more mobility and independence.\nThe website for Soundsight Training is http://www.soundsight.ch\n\xa0\nDeveloping a technology that could sense and reconstruct reality for blind people can be one approach. But, a technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings is actually empowering then to be independent from aid devices.', u'entity_id': 701, u'annotation_id': 6482, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'I started my journey as a science and economics student. After graduation, I spent years working for French and international industrial companies, after which I quit and went on to work in the humanitarian field throughout Southeast Asia. With the arrival of new technologies and the community approach using the Internet to connect people, it became clear to me that there are now widespread and relatively cheap tools of empowerment readily available. Upon my return to Europe, I decided to work on the development of such ideas. This led to the inception of the echOpen project.\nThe idea started from a chat among friends, an engineer (Luc) previously employed in the ultrasound industry, a mathematician and physician (Mehdi) and a radiologist (Pierre). We discussed smartphones: widespread devices that are more sophisticated than the computers that sent people to the moon a few decades ago.\nHow could we use this technology to improve health care, considering that now almost everyone have one in his/her pocket?\nThis idea emerged as a combination of our passion for open technology and community engagement. Using technologies that have existed since the 70s,with a bit of tweaking, are cheap and perfectly functional to make this idea come true. We then give access to these tools and knowledge to anyone interested, and to encourage them to try new things out.\nThis is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros \xa0our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It\u2019s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.\nWe launched the project in late 2014, but the actual work really began in August 2015. Hosted by the hospital Hotel Dieu, right next to the Notre Dame in Paris, we have an open space with an interesting, eclectic ecosystem of researchers, community members, senior professionals working in the technical and medical areas of ultrasound technology, radiologists, experts in echography, medical laboratories, universities, and schools, etc.\nEarlier this year, we developed a functional prototype of the tool - it works, but the quality of the image is not satisfactory. With the involvement of more than 200 people, mostly from France but also in Asia, Africa, and the Americas, we are now improving the quality of echOpen. Our deadline to complete the new medical-quality prototype is this December.\nOur project has been supported by the Fondation Pierre Fabre, which believes in our approach and that our concept could be used in Africa, where doctors lack medical imaging devices. They provide financial support and other resources - and the more we have, the faster and more efficiently we can do our work.\n\nWe are constantly looking for both funding and new profiles to get involved within the community, anyone from developers, to designers, engineers, legal experts, and community managers. We are also working on making our wiki more accessible to English-speaking members. If you have some ideas, tips, or want to share similar work with us - leave a comment or contact us.', u'entity_id': 732, u'annotation_id': 6483, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'community and a\xa0non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of "regulation by design" as well as "safety by design" we first considered regulation and safety and build our development according to the main guidelines.', u'entity_id': 11010, u'annotation_id': 6484, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u"Solution:\nWith cheap modern technology you could easily make a \u2018pamper sniffer\u2019 (please be aware of active patents). This 10\u20ac sniffer would signal yellow (a drop of pee is absorbed so it\u2019s not yet urgent) red (the sh.t has hit the fan, change now). Those IOT freaks will upgrade to an app telling the carer: what, who, and the GPS coordinates of the sinner.\xa0\nCritical obstacle:\nYou think Mr. Pumpers will sponsor a 50% reduction of his profit?\nOpportunity:\xa0\nSomeone could get very rich, society will save and environment spared. Personally I would gladly have paid 100\u20ac for a 'pamper sniffer'\xa0when my kids were small. I\u2019d happily pay 200\u20ac as a gift for my dad and please go ahead charge my children 1000\u20ac when the time comes where I\u2019m in deep \u2026. (provided the nurse obay the alarm).\nBill of materials (draft). Moist sensor/gas sensor, battery, led/buzzer/xxx, microcontroller\u2026", u'entity_id': 722, u'annotation_id': 6485, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'What can you make with old plastic bottles? A vase? A flowerpot? \u2026 an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they\u2019ve helped people to install these units-- which don\u2019t need electricity to function-- in more than 25,000 households in developing areas of the country.\n\u201cMost people live in tin huts\u2026 in the summer, it\u2019s like being in sauna in the Sahara\u201d', u'entity_id': 33744, u'annotation_id': 6486, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 6488, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'We want to provide care for people living in neighbour- hoods with lot of noise around them. Noise can a ect physical and mental health of people. Noise pollution in the cities can take a toll on the quality of life of the people. Research has shown that noise pollution can cause problems like heart diseases, stress, lack of sleep and hearing loss to some extent. The average recom- mended noise exposure limit is 55 decibels. However, tra c accounts for 70 decibels and construction machin- ery accounts for about 120 decibels. These are the major generators of sound in the city and well beyond the average exposure limit. We want to provide care to the people living with so much noise around them by using technology.\n\xa0\nWhat are the main aspects of this project?\nThe main aspect of this project is to use technology to provide care for the people so that they have a healthy lifestyle\n\xa0\nHow to?\nWe can\n-use transducers on the walls or windows of the house. -sensors that sense the movement of people in the house, detecting whether to switch the device on\n-LCD screen showing the decibel levels outside\n\xa0\nLinks for reference:\nhttp://www.explainthatstu .com/noisecancellingheadphones.html\nhttp://doctord.dyndns.org/Pubs/POTENT.htm\n\xa0\nWhat have been done?\nwww.silentium.com/blog\nhttp://www.ippinka.com/blog/sono-peace-quiet-home/\nhttps://www.kickstarter.com/projects/wnc/whisper-the-noise-canceler\nhttps://www.indiegogo.com/projects/muzo-personal-zone-creator-w-noise-blocking-tech-sound-sleep#/', u'entity_id': 771, u'annotation_id': 6489, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Autistic children have limited behaviours about social connections and they can easily get confused from hearing more than one sound when they are outside. We want to help the children to get out into the world without fear. Usually children get very scared of loud noises and it a ects their behaviour. They nd it very intimidating. We propose to care for them by designing a device that lets them hear their parent\u2019s and other familiar voices, phasing out other sounds like those of tra c, crowd, machines etc.\n\xa0\nWhat are the main aspects of this project?\nThe main aspect of this project is to use technology that is not only advanced but also very much user friendly. The prototype will be able to have speech recognition so that it detects the sounds of certain people and lets them through but not intimidating sounds like those of tra c and machines\n\xa0\nHow to?\nWe can\n-use noise cancelling technology and speech recognition software to design the prototype\n-introducing simple gestures to use and control the headphones\n\xa0\nLinks for reference:\nhttp://oureverydaylife.com/use-headphones-children-autism-12460.html\nhttp://www.got-autism.com/blog/?tag=headphones-for-kids-with-asd\n\xa0\n\xa0\nWhat have been done?\nThere hasn\u2019t been anything speci c that has been designed for autistic children that serves the purpose we intend to solve. There have been independent approaches to speech recognition through software and headphones through software.', u'entity_id': 772, u'annotation_id': 6490, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'I read this story and found it of interest.\xa0In a remote clinic in Mbankomo a\xa0doctor attaches electrodes to the chest of a patient lying on an examining table and records the patient\u2019s heart data on an African-designed touch screen medical tablet. The readings are then transferred wirelessly, over the mobile-phone network to specialists in distant urban centers for interpretation, diagnosis and prescribed treatment.', u'entity_id': 555, u'annotation_id': 6491, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Sharing this:the ibreastexam, low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.\xa0\nThis is the full article:\xa0\nUE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.\nThe test is painless and radiation free, and takes less than 5 minutes to complete. The device can be used by any doctor or health worker and the results are available at the point-of-care.ibreastexam\xa0assesses differences in tissue elasticity between malignant and non-cancerous breast tissue, and its tactile sensor measures shear stiffness and tissue compression when applied to the skin.\nA clinical study\xa0conducted in India reported that the test maintained high specificity and outperformed an expert clinician who conducted a conventional clinical breast examination. All malignant lesions were identified by the device, while the clinician failed to identify a non-palpable lesion.\nUE Lifesciences won the 2016 Hitlab world cup at the Hitlab Innovators Summit in New York for their ibreastexam\xa0system. This prize is awarded to a healthcare startup deemed to have made an outstanding contribution in improving the delivery and accessibility of healthcare worldwide.\nMatthew Campisi, CTO of UE LifeSciences made the following statement:\n\u201cWe are truly grateful to have won the HITLAB World Cup and to be part of such a terrific program. As we continue to scale our ibreastexam\xa0product offering, collaboration with partners like HITLAB will help create awareness and establish key partnerships.\u201d\nVideo:\xa0https://vimeo.com/75510451', u'entity_id': 803, u'annotation_id': 6492, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land.\xa0http://www.phoenixconnections.net", u'entity_id': 571, u'annotation_id': 6493, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"These notes and pictures were taken at WeMake in Milan during the meetings held on april 11th 2017 for the openrampette project\n\xa0\nAt WeMake people have being busy with a opencare project about customized ramps to make more shops accessibile to wheelchairs in Milan. It is called openrampette and is being developed with the Comune di Milano, another opencare partner.\n...\nThe group has a discussion about best ideas on the prototype and how to involve citizens of Milan in the design phase. There\xa0 are also needs to develop an app for openrampette.\nThe discussion goes deep in understanding whether the job consisted in reviewing (advanced prototyping) or development. The problem is that there are not enough indoor skills to develop for mobile. Even IoT (Internet of Things) would have been interesting, but there were no news from the groups.There is a proposal about creating a course for app developers and an internship, but it doesn't seem feasible. The UX (User eXperience) approach is a main issue, but a simple \u201cnice, try, next\u201d way cannot work. There is agreement on the fact that the ramp should stay light and not, for instance, 40 kgs heavy.\n\xa0\nIn a presentation of the project there is a interesting discussion about understanding what is not included in the procedures (the rules enforced by the Municipality), and in the advantage of accessing the database mapping the ramps in the city.\nSome hypothetical cases are discussed.\nThe idea to work on is about a \u201cramp on call\u201d that occupies the ground for a very little time, the one needed for the disabled to access the shop and buy stuff.\nOtherwise there is the average ramp, already available where big shops, or post offices are.\nThe results from the questionnaires about the absence of the ramps before many shops in Milan are considered.\nThere is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings.\nSome last work is put on schedule for the end of august, as prototyping, the website, documents, the wiki, the video, etc..\nAll the effort is designed for the local side of the city and then it might be replayed in further city contexts.\nA solution for \u201ccalling\u201d the ramp would be to create a button to push.", u'entity_id': 33749, u'annotation_id': 6494, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.\xa0\nreHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming.\nOur beneficiaries are all those people who needs to have an experience feedback concerning the hand movements.\nreHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance.\nReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.\nreHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.\xa0\nTo define our project we didn\u2019t started from a theoretical concept. We started to make the prototype and to test it.\xa0\nThe development of reHub working prototype has been at the heart of our design process.\nAs described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design.\nAfter testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove\u2019s collected data through a graphical interface and cartesian charts.\nWe are looking for our final user(s), who will try our product and help us develop different options:\n\nSport\nGaming\nEducational\nMedical \xa0\n\nWe want to built a community and start a business strategy.\nWe will publish tutorials, kits and software to make your glove.\nEverything to improve the glove solution.\nWe want to develop 4 different kits to sell:\n\nwith single sensors\xa0\nonly the electronics\nglove tailored\ncomplete of all\n components\n\nWebsites & Social\nwww.rehub.pro\nwww.facebook.com/rehubglove', u'entity_id': 33751, u'annotation_id': 6495, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.\nOpen Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.\nCounter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now.\nAbout a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.\nThe general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.\nRight now we\u2019re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can\u2019t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers.\nProvided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.\nUltimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body\u2019s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet.\nAt the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we\u2019re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we\u2019re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow.\nMeanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it\u2019s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek.\nDo you have any projects in health, medicine, or biohacking that you\u2019d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you\u2019d like to get involved with? Leave a comment and let us know.', u'entity_id': 523, u'annotation_id': 6496, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"WeHandU aims to establish an online platform, where users can share, browse and modify projects\xa0capable of helping people affected by disability.\nWeHandU tryes to solve the problem everyone with disability encounters: prosthesis are not personalized and often need to customized in regard of each personal need.\nThe target is everyone intersted in or affected by disability, ready to learn, design, share and produce their personal device to deal with one (or more) disability.\nWeHandU consists of a site where users can browse a database of existing solution, and can share their own ideas. A group of chosen user, called MENTORS, will help develop ideas that look promising, granting a solid know-how in many field (design, engineering, law, medicin, etc.).\nWeHandU will be an online site, but the focus is on customised items, thus it will be strongly connected to 3D printing technology.\nhttp://wehandu.it/it/\nCreative Commons license\nThe project is still gathering minds to achieve its goals. The site is online, but it's still an early build with very few functionalities.\nWeHandU is at the development stage: we need to put in practice our ideas!", u'entity_id': 835, u'annotation_id': 6497, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 6498, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Tutto \xe8 nato da una nostra esperienza\nMonica: \u201cNicoletta? Andiamo a mangiare una pizza?\u201d\xa0\nNicoletta: \u201cCerto! Prenoto per due al solito posto dove puoi mangiare anche tu?\u201d\xa0\nM.\u201cOk!\u201d.\nRistoratore: \u201cBuona sera Signore, avete prenotato?\u201d\nN. \u201cS\xec, per due; nome Nicoletta\u201d. -\nEccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l\u2019ordine.\xa0\nN.\u201cPer me una prosciutto e funghi\u201d\nM. \u201cIo invece..premetto: sono intollerante al glutine e al lattosio...\u201d il cameriere annuisce \u201c...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...\u201d\nC.\u201cS\xec signora\u201d\xa0\nM.\u201dBene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini\u201d\nC. \u201cDa bere?\u201d\nN. \u201dUna birra per me!\u201d\nC.\u201dE lei?\u201d\nM.\u201dIo? Che cosa posso bere che non sia acqua?\u201d\nC.\u201dAbbiamo due birre senza glutine\u201d\nM.\u201dQuali?\u201d\nC.\u201dLa Daura e la Peroni\u201d.\nGiro lo sguardo verso Nicoletta con un\u2019espressione rassegnata e penso \u201d...sempre quelle...\u201d\nPassano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca \xe9 terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame per\xf2 e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - \u201cChiss\xe0\u201d.\nArriva la pizza e a quel punto, mi assale lo sconforto pi\xf9 profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia...\nNon ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio!\nN. \u201cMonica? Mi fai assaggiare?\u201d\nM.\u201dCerto!\u201d\nN.\u201d...Mmm...il sapore non \xe8 male ma questa non \xe8 una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. \xc8 proprio triste...\u201d\xa0\nM.\u201c...Gi\xe0...\u201d\n---------------------------------\nQuesta serata per Monica e Nicoletta non \xe8 stata l\u2019unica; altre l\u2019avevano preceduta e altre ancora ne seguirono.\nAd ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso:\n\nMonica elenca ad alta voce al cameriere le sue intolleranze,\xa0\nil cameriere annuisce puntualmente,\xa0\nMonica\xa0 si barcamena nella lettura di menu labirintici (a volte privi dell\u2019elenco degli allergeni)\ndalla cucina arriva l\u2019avviso che l\u2019alimento richiesto non \xe8 disponibile\nMonica si accontenta di \u201cci\xf2 che propone la cucina\u201d nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori\n\n\nE in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All\u2019interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.\xa0 \xa0\nQui in allegato la pizza di Monica', u'entity_id': 824, u'annotation_id': 6499, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.', u'entity_id': 33817, u'annotation_id': 6500, u'tag_id': 2028, u'entity_type': u'comment'}, {u'quote': u"As first mission Lorenzo will be in charge of the \u201ccall\u201d part of openrampette; i.e. the device, or the solution meant to call the shop attendants. The result should be a \u201cgood\u201d mock-up to be discussed on in the next meeting of \u201cuser research\u201d with the shop owners themselves. The design side is improving now that the projects have been developed and could involve and motivate many people. It's the turning point from design thinking to the making.", u'entity_id': 852, u'annotation_id': 6501, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u'Independently from the rest of the team, which opposed the need to bring to completion the academic assignment, they sought a new agreement with their mentor and started optimal\xa0thinking at 360\xba. Using 3D ultrasound-based haptic interfaces to offer interactive geometry education or simulators for practical tasks that would completely substitute visualization for acoustic and tactile feedbacks? Most of the early ideas were dropped when their mentor, or people not involved in the team that he suggested to talk to, would object other low-tech solutions (e.g.: wooden models for 3D geometry) could deliver almost the same experience, significantly undercutting the complexities of the projects.', u'entity_id': 577, u'annotation_id': 6502, u'tag_id': 2028, u'entity_type': u'post'}, {u'quote': u"I'm an Interior Architect, Business Woman, Mother and active citizen. I have been running my own Design business for the past 9 years ever since I have left the corporate hospitality world. I started with my company Design2Style in partnership with my Husband, designing residential & interiors and developing brand design for companies. Over time, my interest and knowledge of design thinking and strategy increased, gaining experience in projects and from attending various conferences on the subject, which resulted in moving forward, evolving personally and professionally. I launched Belgium Design Council, which applies design thinking on the project's infrastructural level. This allowed me to move from aesthetic design to applying design thinking processes in \u2018designing\u2019 communities.", u'entity_id': 716, u'annotation_id': 6512, u'tag_id': 486, u'entity_type': u'post'}, {u'quote': u'Breast Cancer Recognizer\nIdea is about detecting the breast with a prototype which have a skin recognition and accelometre to map the breast. It is necessary because every women and men needs to check their breasts once a month. And the techniques of detecting the breast cancer early is so complicated. First with 2 fingers you should message your arm pit. With 3 fingers you should rub down your breast in a circle to the niple... We can optimize this with a prototype.\nWhat are the main aspects of this project?\nOur goal is to detect the cancer in early stage. Our perspective is \u201cit can happen to anyone\u201d It is an awareness and caring project. So we encourage all the people to look after theirselves with our prototype and catch the cancer before it is too late.\nHow to?\nWe should show supervisors the research and prototype of Yemen University\u2019s to think about more simple ways to make this prototype happen. Because their system is so complex and difficult to built with only Arduinos.\nhttp://www.wseas.us/e-library/conferences/2014/Lisbon/BIOENV/BIOENV-20.pdf', u'entity_id': 774, u'annotation_id': 6514, u'tag_id': 488, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22093, u'annotation_id': 6515, u'tag_id': 489, u'entity_type': u'comment'}, {u'quote': u'Even if the potential benefits are high, the maker movement and biohacking are subjects of critics, since : practices are very Western oriented, local knowledge is not acknowledged (it\u2019s classified as superstition or culture) and values are often not put into practice as they should. My paper entitled \u201cBenefit and the hidden face of the maker movement: Thoughts on its appropriation in African context\u201d  was written from the critic perspective.', u'entity_id': 37182, u'annotation_id': 11770, u'tag_id': 490, u'entity_type': u'post'}, {u'quote': u'Thank you for your encouragements. In fact when i volunteered with the world Bank, which took me to 25 villages in Cameroon to work with community health centers, what i saw grieved me so much in terms of infrstructure, sanitation and equipments. No lights at the clinics and lack of portable drinking water . Patients carry water from natural springs to take their drugs and minor or major surgeries cannot be performed at night due to lack of power supply. All of these, affects the quality of health care delivery. I am currently working on a proposal to help these health units get bore holes and solar enegry to power \xa0up their facilities. Any links, contacts for funding will be of great help.', u'entity_id': 21990, u'annotation_id': 6519, u'tag_id': 490, u'entity_type': u'comment'}, {u'quote': u'The motivation of health workers\xa0to deliver services in developing countries has been described as a critical factor in the success of health systems in implementing programmes. How the sociocultural context and affects the values, motivation and actions involved in sexual and reproductive health services is important for policy development and programme planning. With interest in male circumcision\xa0as an HIV prevention option is also necessary, this study explored the perceptions and motivations \xa0involved in sexual and reproductive health services, examining their implications for the possible future roll out of a national programme as well.', u'entity_id': 21127, u'annotation_id': 6518, u'tag_id': 490, u'entity_type': u'comment'}, {u'quote': u'UE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.', u'entity_id': 803, u'annotation_id': 6517, u'tag_id': 490, u'entity_type': u'post'}, {u'quote': u'I\'m Jean-Paul Dossou, from Benin in West-Africa.\xa0\nSome wise people do perceive already the unsustainability of the current health care provision organization in western developped countries, but this is the dreamed model, that developping countries are running to. Is it possible to "jump a generation" in the organization of health care provision in developping countries? This is the underlying question of the "modern" collaborative care expriences we are going to share in this post about Coeur d\'Or.\nAs a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, C\u0153ur d\u2019Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way.\nWe aim\xa0here to present briefly\xa0C\u0153ur d\u2019Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution. \xa0Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity.\nC\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.\nThe group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.\xa0 Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 \u20ac to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers.\nThe rapid development of telecommunications improves the access of a growing number of people to Internet and social media. A critical mass of the group improves its political influence and creates a web tool that can help for a viral diffusion.\nC\u0153ur d\u2019Or demonstrates the feasibility of using social media as an innovative approach for offering promotional and preventive care on health issues in sub-Saharan Africa. It opens new windows for thinking and dreaming again for an effective community participation in all its dimensions in the global south.\nThank you very much for your comments and questions.', u'entity_id': 672, u'annotation_id': 6516, u'tag_id': 490, u'entity_type': u'post'}, {u'quote': u'developing Egypt', u'entity_id': 35613, u'annotation_id': 12207, u'tag_id': 2444, u'entity_type': u'post'}, {u'quote': u"thanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.", u'entity_id': 12111, u'annotation_id': 6521, u'tag_id': 491, u'entity_type': u'comment'}, {u'quote': u'The best use would probably be to spend a day talking to the management team and helping them develop an ongoing practice. Then a couple of days running large group training the daytime and one-to-one sessions in the evening.', u'entity_id': 27318, u'annotation_id': 6520, u'tag_id': 491, u'entity_type': u'comment'}, {u'quote': u'What are the services that Medic Mobile provides?\nMedic believes that health is a human right. We know that global health disparities around the world are vast, and it\u2019s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact.\nFor example, a community health worker can support in the following ways:\n\n\nIdentifying and supporting pregnant women;\n \n\nHelping ensure the pregnant woman gets four antenatal care checkups, and identify any danger signs. (Having frequent checkups increases the chance the mother will give birth in a facility and survive child birth.)\n \n\nEnsure that children are vaccinated fully;\n \n\nScreen children and adults for common diseases (diarrhea, malaria), malnutrition, mental health, etc.\n \n\nIn many of these scenarios, community health workers serve as first responders, so that patients can start getting treatment quickly.\nMedic Mobile\u2019s tools are oriented around specific evidence-based use cases that have a clear impact logic. For example, we know that if we support a pregnant woman receiving a full course of antenatal care, she is more likely to deliver in a facility and survive child birth. Our use cases currently are:\n\n\nAntenatal care\n \n\nChildhood immunizations\n \n\nUnder 5 child health\n \n\nStock monitoring\n \n\nDisease surveillance\n \n\nWhat the means is that in above areas, we have a ton of evidence and experience that our tools work. For a new use case - say, an area of health services or protocol that we\u2019re not as familiar with - we have to do a lot of design. The design and product development teams are very tightly integrated.\nAs far as tools, we have tools for basic phones and smartphones (Android exclusively). We work with implementing partners and/or governments to equip health workers with these tools.', u'entity_id': 564, u'annotation_id': 6524, u'tag_id': 492, u'entity_type': u'post'}, {u'quote': u'every time I hear any talk of revolution: the move towards a western style liberal democracy is not one that Ethiopians I spoke to value highly. Rather, it is economic rights and development that seem to be at the heart of their concerns.', u'entity_id': 4134, u'annotation_id': 6523, u'tag_id': 492, u'entity_type': u'post'}, {u'quote': u'As an incredibly diverse community, the range of experience and knowledge about building economically sustainability projects amongst members ranges from "where do I even begin" to "I just sold my 3rd company". Also, there are many different interpretations of "economic sustainability" and strategies for achieving it. Moneyless crowdfunding with Makerfox anyone?\nA recurring topic is one David De Ugarte dove into in this Las Indias\'s piece on generating revenue through sales. Especially in purpose/value driven contexts, this topic is often controversial and deeply unsettling: []\xa0our \u201cconscience\u201d and the \u201cprivate logic\u201d will join forces to tell us \u201cwe are not good at it\u201d, and that this \u201cit\u201d \u2013 selling \u2013 is very close to deceiving. But this is false.\xa0\nMost initiatives fail to generate monetary resources not because they don\u2019t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.\xa0\nMany of the projects we see popping up on Edgeryders, are collaborative and decentralised initiatives. Perhaps it makes sense to structure a process which everyone can participate in to build economic sustainability into projects in a decentralised way:', u'entity_id': 4195, u'annotation_id': 6676, u'tag_id': 582, u'entity_type': u'post'}, {u'quote': u'how we can translate the intangible social, cultural, creative value to a tangible market one?', u'entity_id': 14720, u'annotation_id': 6675, u'tag_id': 582, u'entity_type': u'comment'}, {u'quote': u'A Do-It-Yourself Revolution in Diabetes Care\n\nParents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin.\n\n  \n  \n    \n    \n  \n  \n\n\n\nThis is pretty amazing: an entire open source\xa0ecosystem, from sensors to apps to insulin, emerging from patients.\xa0\n\nWhere do we want to store all this stuff?', u'entity_id': 5392, u'annotation_id': 12353, u'tag_id': 704, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11649, u'annotation_id': 6899, u'tag_id': 704, u'entity_type': u'comment'}, {u'quote': u'This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.\xa0\nLucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks \u2013 an additional advantage to your idea.', u'entity_id': 20068, u'annotation_id': 6898, u'tag_id': 704, u'entity_type': u'comment'}, {u'quote': u"So looking at your crowdfunding,\xa0people not only\xa0support, but actually\xa0fund scientific\xa0research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led?\nHow long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?", u'entity_id': 10213, u'annotation_id': 6897, u'tag_id': 704, u'entity_type': u'comment'}, {u'quote': u'Solo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!', u'entity_id': 10762, u'annotation_id': 6896, u'tag_id': 704, u'entity_type': u'comment'}, {u'quote': u'If we can achieve the creation of open source insulin, it could contribute to at least three important goals - first, by making insulin production more economical at a smaller scale, and opening up manufacturing to much more competition, it could improve cost and access for patients. Second, we hope the protocol will serve as a basis for future research into improvements to insulin - variants that are longer acting, shorter acting, more temperature stable, and so on - that address different concerns that arise in treatment. Third, we hope it might serve as a basis for research and production of other proteins by small groups, and open up participation in research and development to accelerate progress in other aspects of diabetes treatment besides insulin and other areas of science and medicine besides diabetes treatment.\nCurrently we\u2019re working on a novel method to produce human insulin, which is not patented, and as far as I know is not patentable. There are variations on normal human insulin to make them longer or shorter acting, which involve very small changes to the sequence that codes for human insulin.', u'entity_id': 552, u'annotation_id': 6895, u'tag_id': 704, u'entity_type': u'post'}, {u'quote': u'This is good news to diabetic sufferers in Africa; it is good news to poor children and families in Africa who cannot afford quality health care. This is good news to hypertensive patients and the obese. This is good news to Africa. My dream is that this project greatly lowers mortality rate in Africa, and if we are not being too optimistic, perhaps...just perhaps, we may begin to realize stronger development.', u'entity_id': 725, u'annotation_id': 6894, u'tag_id': 704, u'entity_type': u'post'}, {u'quote': u'Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.\nOpen Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.\nCounter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now.\nAbout a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.\nThe general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.\nRight now we\u2019re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can\u2019t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers.\nProvided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.\nUltimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body\u2019s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet.\nAt the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we\u2019re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we\u2019re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow.\nMeanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it\u2019s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek.\nDo you have any projects in health, medicine, or biohacking that you\u2019d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you\u2019d like to get involved with? Leave a comment and let us know.', u'entity_id': 523, u'annotation_id': 6893, u'tag_id': 704, u'entity_type': u'post'}, {u'quote': u'The Diabetes implant: What was an illegal hack in 2012, is now a solution that is available for others. How did this happen? What kind of legal hoops did they have to jump through?', u'entity_id': 5463, u'annotation_id': 6892, u'tag_id': 704, u'entity_type': u'post'}, {u'quote': u"of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better.\nHow do we help people find the 'affliction' they have?", u'entity_id': 16932, u'annotation_id': 6900, u'tag_id': 705, u'entity_type': u'comment'}, {u'quote': u'This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros \xa0our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It\u2019s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.', u'entity_id': 732, u'annotation_id': 6901, u'tag_id': 706, u'entity_type': u'post'}, {u'quote': u"Excuseme the fowl language, but it\u2019s appropriate here.\xa0\nWe all know (or will) the insane cost of them. We spend lots of money on them on the household and institutional budgets. Several times a day we throw away these 30 cents items, often without needing to. Every human will or have used them for years. For multinational corporations they are the sweet smell of money, for us\u2026well it depends. Surely a disaster for\xa0the environment.\xa0\nWhat are we talking about?\nThis is the situation. You are a caring person and you see tears. What\u2019s the problem?\xa0Parents know the drill. The usual detection algorithm starts. A check flowchart: pain? hunger? \u2026. or is it the \u2018bottom line\u2019?\nThe sweet or not so-sweet smell tells you what you have to do.\nYou will also know about the silent-positive; no alarm and no change leads\xa0to a pain in the bottom. We dry the tears and invest in curing the wounds. Soon this leads you to adopt the institutional approach.\nThe institutional approach is to change at specific times, whether needed or not. The vacant slot is usually before feeding and ofthen clean ones goes to pollute our dump-yard. What goes in, must come out and then the sh.t hits the fan. The unscheduled aftermath sometimes goes undetected (silent-positive).\xa0This scheme goes for our elderly as well. The poor person is left unchanged.\xa0\nYou know what we are talking about here, don\u2019t you? DIAPERS. Those wonderful disposable ones that have released tremendous time resources, given\xa0mothers time to breathe,\xa0for which, we gladly pay the price.\xa0\nWhat\u2019s the problem? The issues are 1. many times diapers are changed un-necessarily and 2. many times they are NOT changed at the right moment. First case is a waste of money and environmental resources. Second case is health hazard (especially for the elderly).\nThe theoretical solution is simple: Change when needed.\nIn practice: you can\u2019t go around sniffing there every 20 minutes, especially not as institutional employee.\nSolution:\nWith cheap modern technology you could easily make a \u2018pamper sniffer\u2019 (please be aware of active patents). This 10\u20ac sniffer would signal yellow (a drop of pee is absorbed so it\u2019s not yet urgent) red (the sh.t has hit the fan, change now). Those IOT freaks will upgrade to an app telling the carer: what, who, and the GPS coordinates of the sinner.\xa0\nCritical obstacle:\nYou think Mr. Pumpers will sponsor a 50% reduction of his profit?\nOpportunity:\xa0\nSomeone could get very rich, society will save and environment spared. Personally I would gladly have paid 100\u20ac for a 'pamper sniffer'\xa0when my kids were small. I\u2019d happily pay 200\u20ac as a gift for my dad and please go ahead charge my children 1000\u20ac when the time comes where I\u2019m in deep \u2026. (provided the nurse obay the alarm).\nBill of materials (draft). Moist sensor/gas sensor, battery, led/buzzer/xxx, microcontroller\u2026", u'entity_id': 722, u'annotation_id': 6902, u'tag_id': 707, u'entity_type': u'post'}, {u'quote': u'I feel a link to this diaspora, all diaspora really. There is something those of us born with feet in many worlds discover sooner or later. That we are not one or the other, but something else.. ours are third, remix, cultures. Religion is one of those sensitive areas we have to develop mechanisms for navigating.', u'entity_id': 4134, u'annotation_id': 6903, u'tag_id': 708, u'entity_type': u'post'}, {u'quote': u'That\'s very informative, @jdossou80@yahoo.com, thanks.\xa0\nIt seems that in the USA and Europe there is a "middle generation": people that got on the Internet when it was still relatively new, let\'s say before 2006. Those people managed to see the tail end of the noncommercial Internet; and they remember what it means for using a website to to be "hard": slow dialup connections, textual interfaces, floppy disks with vintage browsers like Mosaic and Netscape. These people make good online collaborators; they go for content and community, and if they need to work a little harder to get it they will. This means they will forgive you websites like Edgeryders, that do not have the usability firepower of Facebook.\xa0\nYounger people here are harder to engage. They have never known anything but superfast Internet with integrated video, always available on their smartphones. They do not miss the free, noncommercial web of the early days, an\xa0\xa0have less patience for minor technical flaws.\xa0\nFrom what you say, Africa skipped the early phase of the Internet. Almost everyone who is online now got online in the last 5 years. They have never known anything but Facebook. It is the only game in town.', u'entity_id': 23162, u'annotation_id': 6905, u'tag_id': 709, u'entity_type': u'comment'}, {u'quote': u"3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan\xa0Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve\xa0all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.", u'entity_id': 21489, u'annotation_id': 6904, u'tag_id': 709, u'entity_type': u'comment'}, {u'quote': u'Hello friends,\nVery interesting topic and quite a common problem as well i believe. I will share with you few things in hope it is beneficial :).\nHaven\'t felt depression in years, sadness very rarely and short termed. I believe sadness comes from our inability to accept a certain situation, our resistence to it. If there is a situation we don\'t like we have only two choices: Accept it as it is or change it or at least try to change it. In both situations we shouldn\'t be depressed. If de did all in our power and failed to change it, we should be satisfied with ourselves and accept the outcome, since there is no alternative. However i do believe once sadness comes we should not try to supress it, let it run its course because anything else would be commiting violence upon our own nature and sadness would still manifest itself somehow.\nGood at school, always calm and good kid, inventive, reading since i was 5, playing chess since my 6th year...i can\'t really tell how many times i heard my family members say this dreadful phrase to their children: "just take Jasen\'s example, can\'t you be like him".\xa0\nThan i was 27, married, hated my job, didn\'t love my wife, i was miserable and had a lot of health issues. I started wondering: "how did i end up right here at this moment in life?" I knew i totally went off my path but didn\'t yet realise how or where is my path.\xa0\nAfter realising\xa0the community in which i grew up actually applied huge subconscious pressure on me through their projections of myself, through their expectations especially, and that so many of my life\'s actions were led by those thoughts in my head which were not really my thoughts. (i actually got married because everyone was telling me it\'s the right time and after some time it made sense...how crazy!).\nMy next step was\xa0selfexploration, i had to get to know myself. I stayed at home reading books for months, Carlos Castaneda\'s books were an amazing discovery at that time. I went into nature for periods of isolation where i spent my time in silence and thought, and finally after some time i started meditating.\xa0\nAs far as success is concerned i agree with Alberto. Should we measure ourselves in comparison to others or by finding our own system of values and definition of success? For example i have 0 debt, built my own house by the age of 28, a good\xa0car and pretty much anything i need materially now...most of my friends think i am succesful. I would however consider myself succesful if i could succeed in creating a well balanced family full of love and respect, or if i could be nothing but a positive and inspiring experience for anyone who meets me. Or if i could attain permanent state of meditation for example. Also i have been with many women, and ofcourse friends\xa0i went out with always considered me lucky or succesful with women. Well again my definition of success is very different: i would have preferred to stay with the first one i loved...or with any i loved. Now, in retrospective i rather think i failed miserably with some of those women and brought really bad kharma on me through those "successes" :).', u'entity_id': 26015, u'annotation_id': 6911, u'tag_id': 710, u'entity_type': u'comment'}, {u'quote': u'Inspiring, @KiraVde and @ivan (welcome back to both of you!). But I don\'t think it\'s quite that simple. "Being different", going by a different value system, is itself entropic. Here\'s why: to accomplish anything, we humans need other humans. Other humans are attracted by "successful" (as per the dominant canon of what "successful" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your\xa0chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners.\xa0So, being perceived as successful increases your chances of actually being successful.\xa0\nThat\'s not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.\xa0\nAn unfortunate consequence of this is that, the more different you want to be, the more energy\xa0you need to invest promoting yourself. The message is "look at me, I am not a failure, I am a success by my own measure". Social media are full of this, often cloaked in hyper-individualistic narratives, of the "I quit my day job to follow my dream" type. Which is ironic, because\xa0hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need\xa0for social acceptance.', u'entity_id': 24963, u'annotation_id': 6910, u'tag_id': 710, u'entity_type': u'comment'}, {u'quote': u'I feel your plea, and as @KiraVde says I also wish I would not give too many fucks.\nMyself, I am afraid of taking things easy and slowing down, because I feel that if I am not going forward I am going backwards (by whatever standard!) and.. what if I stopped caring? That scares me the most I guess.\nAt the same time I see a spiritual path\xa0in finding new ways of changing yourself to overcome challenges. I see these situations like signals telling me to adapt and find a new way to fit better.', u'entity_id': 23909, u'annotation_id': 6909, u'tag_id': 710, u'entity_type': u'comment'}, {u'quote': u"One time I sat in grand \xe9cart position for 48 hours so that I could join the pro gym team. Just to illustrate: I'm very disciplined and am applying to be Tina's new best friend. But the latest skill that I've been training is to do nothing. The saying goes that\xa0a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age,\xa0I'm not prepared to take the risk.\nWhen the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things.\nOne: when you look at discovery channel, animals don't spend all their time chasing. Most of it is just lying in the sun. No judgement necessary.\nTwo: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass?\nOn the question of how to\xa0help people to cope with expectations they can't and don't want to meet - \xa0I think it's something we each do for ourselves. Personally I draw a lot of inspiration from people who don't give too many fucks. So I try to be that person, too.", u'entity_id': 20396, u'annotation_id': 6908, u'tag_id': 710, u'entity_type': u'comment'}, {u'quote': u'I fully recognize myself -maybe a year back or so - in this picture. The advice I\'ve been given is to learn first\xa0 to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the "professional" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can\'t do it alone, and shouldn\'t. So the challenge is finding those like minded communities which Alberto mentions\xa0and dreaming up\xa0solutions to make it better for more people. If you know of good projects do recommend, I\'m very interested.\nThis talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it alread', u'entity_id': 16075, u'annotation_id': 6907, u'tag_id': 710, u'entity_type': u'comment'}, {u'quote': u'Hello Alberto, nice to meet you too! \u201eBut I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself in some other way.\u201c Exactly! Thanks for your ideas and input. I think that your idea of changing my own perception on success and failure is really a good starting point. But it is a piece of a much more complex puzzle, I guess. Building communities of like-minded people sounds good, too, and I see how the unMonastery project contributes to that. Maybe one could also find a way to promote an alternative vision for society within \u201emainstream culture\u201c, whatever this is...', u'entity_id': 11888, u'annotation_id': 6906, u'tag_id': 710, u'entity_type': u'comment'}, {u'quote': u'I\'ve noticed, when discussing trust personally, that the meaning of trust is not as clear as it is sometimes assumed. To me there are levels of trust, that can be drawn out by asking questions like "would you trust this person to..." You can sort these questions by asking a bunch of them together about the same person. "... take a letter to the post office"; "... keep my house keys for emergency use"; "... look after my child when I\'m away" (and what age of child?) "... not to trick me or take advantage" -- all these (and many more) might have different sets of people who I would trust in that way.\nFor me, it\'s about having reasonable confidence that they would act in specific situations in a way similar to the way I would. Normally we get this only through personal experience. But if we documented trust more, we might be able to trust people based on the recommendations of other people we trust, for instance.\nMaybe worth exploring?', u'entity_id': 16945, u'annotation_id': 6913, u'tag_id': 711, u'entity_type': u'comment'}, {u'quote': u'1) Working trust is very different from social trust; and there needs to be a boundary.\xa0\n2) What also worked for her is deciding to work on even a small project.\n3) A story that binds us together - understanding how our different activities are related\n4) Documentation: what does it mean? for us it has been in writing.', u'entity_id': 788, u'annotation_id': 6912, u'tag_id': 711, u'entity_type': u'post'}, {u'quote': u"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!", u'entity_id': 859, u'annotation_id': 6917, u'tag_id': 712, u'entity_type': u'post'}, {u'quote': u'I also initiated a circle once during a workshop where people didn\'t really know each other and there wasn\'t a real theme or topic. In that setting it didn\'t feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there\'s always (some) interest), \xa0there wasn\'t really a common intention or relevance to have this talk together. So I wouldn\'t organize a circle "out of the blue" again.', u'entity_id': 24534, u'annotation_id': 6916, u'tag_id': 712, u'entity_type': u'comment'}, {u'quote': u"That's a valid point @Rachel . Although I am a big fan of documentation, I have personally not given it too much thought for OI. Partly because the group in Oakland took the approach of not having an open and rolling documentation repository. Partly because it seemed like too big an effort for now, when\xa0we are already struggling with managing all the information we do and don't have.", u'entity_id': 11937, u'annotation_id': 6915, u'tag_id': 712, u'entity_type': u'comment'}, {u'quote': u'After the first round of discussions we noticed that all kind of organizations are ready to become more collaborative, but they are missing the step-by-step tools to achieve this.\xa0They all are conscious about the power of collaboration, but have never had successful long lasting experiences. The goal of this workshop was to find the key elements to make a collaborative initiative succeed, this leads us to the second point.', u'entity_id': 541, u'annotation_id': 6914, u'tag_id': 712, u'entity_type': u'post'}, {u'quote': u'Fifteen years ago, I wrote an academic paper on the incipient technology of digital advertising screens, the way they were likely to change our experience of urban living and the challenges they posed to our conceptions of self, privacy and the public realm.\nAt the time, such technologies were the stuff of science fiction movies \u2013 part of the classic \u2018Blade Runner\u2019 aesthetic of cosmopolitan dystopia. Most people did not anticipate their widespread adoption, and certainly did not consider their subtle social implications; but for those who did, perhaps the most haunting fear about their probable dissemination was the certainty that the social and psychological changes they engendered would quickly become the new status quo, unnoticed and unquestioned.', u'entity_id': 549, u'annotation_id': 6926, u'tag_id': 716, u'entity_type': u'post'}, {u'quote': u'I responsed\xa0to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation\xa0of a person with the\xa0actual\xa0person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are\xa0nostalgia\xa0rather than\xa0replication, which is probably why concept behind the BM episode was so arresting - it sought to\xa0replace\xa0the dead rather than\xa0remember\xa0him.\xa0\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 22330, u'annotation_id': 12354, u'tag_id': 2030, u'entity_type': u'comment'}, {u'quote': u'I had a friend who was very active on social media \u2013 in fact one of its early\xa0users, and author of a 2003 book thereabout. When he passed, I unfollowed his accounts. The last thing I want is a digital ghost haunting my feeds.', u'entity_id': 20691, u'annotation_id': 6930, u'tag_id': 2030, u'entity_type': u'comment'}, {u'quote': u'Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of \u201cholding space\u201d for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began \u201cdeep-liking\u201d my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal \u2013 knowing how to approach someone in grief on social media or how to express grief on social media is not actually \u201ccommon sense\u201d. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.', u'entity_id': 548, u'annotation_id': 6929, u'tag_id': 2030, u'entity_type': u'post'}, {u'quote': u'Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn\'t go to the funeral: it still feels surreal, like she might show up at any time, and the "active" facebook account isn\'t helping.', u'entity_id': 8509, u'annotation_id': 6928, u'tag_id': 2030, u'entity_type': u'comment'}, {u'quote': u'This is why the famous Black Mirror episode about digital afterlife was so disturbing. The protagonist was flailing about, unable to move on, as the AI occasionally manages to make a convincing simulation of her dead husband. Convincing, that is, to her: we, the spectators, are not fooled. We shake\xa0our heads as she holds on to the simulacrum. We see her doing almost all the cognitive work to build the illusion of an ongoing relationship.', u'entity_id': 20691, u'annotation_id': 6927, u'tag_id': 2030, u'entity_type': u'comment'}, {u'quote': u'It was the Place which really made my camp experience. With scarce Internet and mobile signal, vague appearances of machines, we found ourselves in a nature park with a history, at a two-hour train ride en route from Berlin to Hamburg', u'entity_id': 36387, u'annotation_id': 11699, u'tag_id': 1907, u'entity_type': u'post'}, {u'quote': u"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the\xa0digital\xa0platform of social media (they pay less attention to the\xa0public\xa0nature of some of these platforms).", u'entity_id': 11904, u'annotation_id': 6933, u'tag_id': 718, u'entity_type': u'comment'}, {u'quote': u"I am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else's death\xa0feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.", u'entity_id': 8509, u'annotation_id': 6932, u'tag_id': 718, u'entity_type': u'comment'}, {u'quote': u'Being a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of \u201cholding space\u201d for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began \u201cdeep-liking\u201d my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal \u2013 knowing how to approach someone in grief on social media or how to express grief on social media is not actually \u201ccommon sense\u201d. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.', u'entity_id': 548, u'annotation_id': 6931, u'tag_id': 718, u'entity_type': u'post'}, {u'quote': u"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing\xa0 exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.\nAlso, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.", u'entity_id': 29079, u'annotation_id': 6936, u'tag_id': 719, u'entity_type': u'comment'}, {u'quote': u'... if @ybe has found evidence of "digital grieving" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...', u'entity_id': 27820, u'annotation_id': 6935, u'tag_id': 719, u'entity_type': u'comment'}, {u'quote': u'I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever "has not moved on", is "affecting others", is "bothersome" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.', u'entity_id': 25204, u'annotation_id': 6934, u'tag_id': 719, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 6939, u'tag_id': 720, u'entity_type': u'post'}, {u'quote': u'Channels\nShort-term: online (info and community)\nLong-term: face to face (workshops on two main subjects)\nActivities:\n\ndevelop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc.,\ncontact points in the Netherlands on sports coaches to contact for guidance,\nset up sports projects and readings about healthy food and sports for cancer patients,\ncreate communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don\u2019t have a partner.', u'entity_id': 711, u'annotation_id': 6938, u'tag_id': 720, u'entity_type': u'post'}, {u'quote': u'John Willibanks of Sage Bionetworks\xa0about medical\xa0data\xa0https://www.ted.com/talks/john_wilbanks_let_s_pool_our_medical_data?language=en', u'entity_id': 5491, u'annotation_id': 6940, u'tag_id': 2031, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 6941, u'tag_id': 723, u'entity_type': u'post'}, {u'quote': u'disabilities', u'entity_id': 34574, u'annotation_id': 12109, u'tag_id': 2309, u'entity_type': u'post'}, {u'quote': u'"grief is a form of disability..."\n\nI think this is a very interesting suggestion\xa0Patrick, that may benefit from great insight.\n\nI also read a very interesting acticle about how it is often harnessed by communities to help deliver change as well:\n\n\n  \n    slate.com\n  \n  \n    \n\nLGBTQ Activists Have Always Turned Grief Into Political Action. After Orlando,...\n\nIt was a Tuesday, over a week after the killings, when they finally opened the immediate area around Pulse to the public. The June 12 massacre at the O ...\n\n  \n  \n    \n    \n  \n  \n\n\n\nWell worth a read', u'entity_id': 23507, u'annotation_id': 12358, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u"Are you aware of the huge international work on ICF?\n\n\n  \n    en.wikipedia.org\n  \n  \n    \n\nInternational Classification of Functioning, Disability and Health\n\nThe International Classification of Functioning, Disability and Health (ICF) is a classification of the health components of functioning and disability. The ICF received approval from all 191 World Health Organization (WHO) member states on May 22, 2001, during the 54th World Health Assembly. Its approval followed nine years of international revision efforts coordinated by WHO. WHO's initial classification for the effects of diseases, the International Classification of Impairments, Disabilities,...", u'entity_id': 13939, u'annotation_id': 12357, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u"\u201cDon\u2019t assume a person with a disability is easily offended.\u201d\n\n\xa0\xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \u2014\u201cDisability Etiquette\u201d from Wikipedia.\xa0\n\nAt the beginning of the research, we asked ourselves, \u201cWhat is disability?\u201dAccording to Cerebral Palsy: A Guide for Care by Bachrach Miller, the terms regarding disability are defined as such:\n\n\u201cImpairment is the correct term to use to define a deviation from normal, such as not being able to make a muscle move\u2026Disability is the term used to define a restriction in the ability to perform a normal activity of daily living which someone of the same age is able to perform. \u2026 Handicap is the term used to describe a child or adult who, because of the disability, is unable to achieve the normal role in society commensurate with his age and socio-cultural milieu\u2026All disabled people are impaired, and all handicapped people are disabled, but a person can be impaired and not necessarily be disabled, and a person can be disabled without being handicapped.\u201d[1]\n\nNowadays, more and more people begin to pay attention to how to address people with disabilities. The use of \u201cpeople-first language\u201d* in English aims to \u201cavoid the subconscious dehumanization when discussing people with disabilities\u201d[2]. However, as the researches continue and after we interviewed a few people with disabilities, we soon realized that language is not really a problem. Every person we interviewed all said that the word \u201cdisability\u201d doesn\u2019t bother them at all and they don\u2019t mind being called \u201cdisabled\u201d because it is a fact. (Interview with Raul Krauthausen by @Moriel).\n\nSo here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies?\n\nAnother example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don\u2019t think otherwise to begin with.\n\nCould it be that some of us\u2014people without physical disabilities\u2014think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people\u2019s opinion.\xa0\n\nFor example: use \u201ca person with a vision impairment\u201d instead of \u201ca blind person\u201d\n\n1.http://gait.aidi.udel.edu/gaitlab/cpGuide.html\n\n2.https://en.wikipedia.org/wiki/People-first_language\n\nThis is a group project on going #able with @Moriel, @ChristineOehme and @Luise Kr\xf6ning", u'entity_id': 694, u'annotation_id': 12356, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u'disability', u'entity_id': 34541, u'annotation_id': 12287, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u"WeHandU aims to establish an online platform, where users can share, browse and modify projects\xa0capable of helping people affected by disability.\nWeHandU tryes to solve the problem everyone with disability encounters: prosthesis are not personalized and often need to customized in regard of each personal need.\nThe target is everyone intersted in or affected by disability, ready to learn, design, share and produce their personal device to deal with one (or more) disability.\nWeHandU consists of a site where users can browse a database of existing solution, and can share their own ideas. A group of chosen user, called MENTORS, will help develop ideas that look promising, granting a solid know-how in many field (design, engineering, law, medicin, etc.).\nWeHandU will be an online site, but the focus is on customised items, thus it will be strongly connected to 3D printing technology.\nhttp://wehandu.it/it/\nCreative Commons license\nThe project is still gathering minds to achieve its goals. The site is online, but it's still an early build with very few functionalities.\nWeHandU is at the development stage: we need to put in practice our ideas!", u'entity_id': 835, u'annotation_id': 6955, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11777, u'annotation_id': 6954, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 6953, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u"Bangladesh is not only one of the most densely populated countries in the world (with 926 persons per square kilometer) but also located in the world's largest delta, facing the Himalayas in the North, bordering India in the West, North and East, Myanmar in the Southeast, and the Bay of Bengal in the South.\nNo comprehensive empirical study has been conducted at present to determine the incidence and prevalence of disabilities in Bangladesh. The few studies that have been conducted reflect a medical rather than a social model of disability, and they are also limited in geographical coverage. While no reliable national data exist, anecdotal information and a number of micro studies generally suggest a disability prevalence rate of between 5 to 12 per cent. This is close to the WHO estimate, which states that 10 per cent of any given population can be considered to have some or other form of disability.\nIgnorance and wrong beliefs surrounding disability, compounded with a negative and derogatory attitude of the community (including family members) have contributed to the marginal development in the disability sector in Bangladesh.\nAs Bangladesh makes progress in implementing its health policies on infant mortality rate, immunization coverage, and general health care, there is likely a lowering of incidence of disabilities. However, the gains due to improved health care can be outweighed by the triple effects of increased number of surviving children with disabilities, increased number of people incurring disabilities due to old age (e.g., cataracts and arthritis), and widespread malnutrition. Disabilities due to natural calamities and road traffic accidents imply that the prevalence of people having disabilities in Bangladesh is likely to continually rise over-time, although the nature and distribution of disabilities are also likely to change considerably.", u'entity_id': 840, u'annotation_id': 6952, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u'The idea to work on is about a \u201cramp on call\u201d that occupies the ground for a very little time, the one needed for the disabled to access the shop and buy stuff.\nOtherwise there is the average ramp, already available where big shops, or post offices are.\nThe results from the questionnaires about the absence of the ramps before many shops in Milan are considered.\nThere is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings.\nSome last work is put on schedule for the end of august, as prototyping, the website, documents, the wiki, the video, etc..\nAll the effort is designed for the local side of the city and then it might be replayed in further city contexts.\nA solution for \u201ccalling\u201d the ramp would be to create a button to push.', u'entity_id': 33749, u'annotation_id': 6951, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 26058, u'annotation_id': 6950, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u'Caring with science\nMore fundamentally, care is everyone\u2019s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible\u2019s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it\u2019s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there\u2019s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it\u2019s communicated.\nThis is only one of plenty of groups that don\u2019t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover', u'entity_id': 530, u'annotation_id': 6949, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u'I found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability.\nIn speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability...\nAnyway, thank for posting.', u'entity_id': 19688, u'annotation_id': 6948, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u"You might want to get in touch with members\xa0in Milano for a slightly different problem and approach -\xa0they zoomed in on the\xa0problem\xa0of\xa0wheelchair mobility and how\xa0disabled\xa0people can't push their own wheelchairs and\xa0be on their own. Better designed\xa0wheelchairs\xa0would ideally increase one's autonomy and freedom to move. It takes\xa0out of the equation the need to be accompanied at any step,\xa0which is after all a practical reality identified by the group in discussions and something which can affect how others treat you. \xa0It would be interesting to study how perspective differ\xa0- what goes on in people's heads when they see someone helped versus\xa0when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here's the idea where you can get in touch for more info.", u'entity_id': 8596, u'annotation_id': 6947, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u"I also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and\xa0is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend. \xa0Our son will be changing to a further\xa0specialised school closer to our\xa0home now. I have spoken\xa0with the principal\xa0and he is very interested some of the creative\xa0inclusive projects I have suggested,\xa0but the school has\xa0no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work.", u'entity_id': 716, u'annotation_id': 6946, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u"The area I focused on\xa0was disability. I interviewed a few people on the street who were in a wheelchair, and did a half day experiment rolling myself in a wheelchair. It was quite an experience I have to say. I suddenly\xa0found myself shorter than everyone else --\xa0both physically and psychologically. Many people offered me help, and of course I told them the truth, but I felt if I were really disabled, I wouldn't simply say yes because I wouldn't want to trouble others and\xa0would want to be as independent as possible. On the other hand, when I see a handicapped person, and a few of my classmates agreed on this, sometimes I am not sure if I should help him/her because I don't want to assume that they can't perform\xa0certain actions and offend them.", u'entity_id': 23723, u'annotation_id': 6945, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u'They are taking a different approach in asking how to create environments which are \xa0\xa0\xa0inclusive by design and not by label.\nSomeone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them.\xa0They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This\xa0allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.', u'entity_id': 8631, u'annotation_id': 6944, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u'The Hubotics project started in late 2013. At that point I was about to finish my Master\u2019s studies and I wanted to add a practical side to my technical skills as an engineer and as a passionate DIYer by developing accessible technologies and aids which could have helped improving independence for people suffering from motor disabilities. Actually, the reason why I decided to study engineering and became a builder and hacker stemmed from my personal experience with my sister Chiara, who suffers from a motor disability.\nI remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the \u201clatest\u201d rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one\u2019s own body is one of the most gratifying experiences everyone could hope for, that\u2019s how the idea of creating an exoskeleton to be used in everyday\u2019s life was born.', u'entity_id': 806, u'annotation_id': 6943, u'tag_id': 2498, u'entity_type': u'post'}, {u'quote': u"can\xa0try to condense some other impressions and stories from Laos.\nI ever only saw one beggar. He was a physically disabled man, unable to stand, having to crawl\xa0through\xa0the streets. At different times I saw him receiving food from the small food stalls on the street.\nI had befriended\xa0a local woman, let's call her Babs,\xa0through a common friend and I asked her about this man. Babs\xa0immediately knew who I meant. She said that there were not many beggars and homeless people\xa0in Savannakhet, a city of 120,000 people and second largest city\xa0in Laos. There used to be many people asking for money on the streets a few years earlier.\xa0Most of them came from large, poor\xa0families outside the city. One or two family members would go to the city to beg and send some money back home. Recently, the local government chased those people away back to the rural areas.\nThe\xa0reasoning was\xa0that the families\xa0were able to sustain themselves growing crops on their small piece of land, so they should not come begging in the city. Responsibility to take care of each other rests\xa0on\xa0the family. This is the situation for most of the Lao: they can sustain themselves but they have almost nothing more and live in poverty. Begging in the city is one of the ways out.\nBabs said that now, there only remain a few homeless people\xa0who have mental or physical disabilities and no family to rely on. In other words, those who have no other options. The police condones them and they are usually helped by the community, like getting food from food vendors.\nBabs mentioned that there were plenty of mentally and physically disabled people\xa0due to a poor medical system, pointing out especially the issue of giving birth in rural areas. Most of them are cared for by their family.", u'entity_id': 29080, u'annotation_id': 6942, u'tag_id': 2498, u'entity_type': u'comment'}, {u'quote': u"Since last week, Madagascar has been classified nation in disaster. The method of @Nick_Tavitashvili was helpful thanks for your advice @Alberto. Almost the majority of The North of Madagascar is in deep water. Some NGO who can acced with their cars in some places to bring some help, \xa0but there are many unaccessible places still need help. This link below shows how it's going on in one of the place where \xa0the cyclone Enawo went.\xa0\n\n\n  \n    usaid.gov\n  \n  \n    \n\nResponding to Disaster: Feeding Hundreds Uprooted by Cyclone Enawo", u'entity_id': 24213, u'annotation_id': 12360, u'tag_id': 2033, u'entity_type': u'comment'}, {u'quote': u'Thank you @Natalia_Skoczylas and @Alberto\n\nBeing a country often ravaged by tropical depressions and powerful cyclones I can relate with the debacles faced by @Michel. There have been a plethora of effective adatptation/mitigation measures applied in Bangladesh over the years. And gradually, we have grown quite adept at reducing vulnerabilites. Systematic risk assessment, identification of potential hazards and the placement of a tailored warning system have proven very effacious in reducing damages. However, cyclones are becoming more frequent with variable intensity - an observation supported by reliable scientific\xa0data. Although training, teaching and advising can be effective in raising awareness on survival techniques, a regionwide integrated and inclusive effort is required to truly generate meaningful impact. Please let me know how my expertise can be of further use in this case. Thanks.', u'entity_id': 20497, u'annotation_id': 12359, u'tag_id': 2033, u'entity_type': u'comment'}, {u'quote': u'bottom up crisis management.\nThrough the cold war we saw disaster situations managed through large scale civil defence. Even at the end of the cold war the mass migration that followed was handled with a military humanitarianism.\nWith the rise of global austerity since 2008, civil defense with the\xa0care sector in general has been get eroded. Cuts to public services reduce there capacity to respond.\noverall the public respond well to disasters,\xa0but new formations of disaster management are not without complications.\xa0\nhow can gaps be filled more effectively?\nhow can training\xa0be provided that meets unkown needs?\xa0\nhow do we prevent difficulty from becoming dispair?\nI have been doing research through actions. Seeing the migrant crisis as a training ground for the crisis of the future. Working with a mobile footcare clinic and trying to extract the best practice as we moved through the small camps of italy and down to serbia. dealing with medical issues and truck logics\xa0\nhow do we repilcate skilling up?\nhow do we deal with elite panic? ie large organisations in dissarray due to poor leadership.\nhow do we get people to thrive in high stress enviroments?\nmost of us can think of times when we have risen to the challenge of tough situations.\nwhat are the emotions and logistics behind\xa0that happening?', u'entity_id': 6470, u'annotation_id': 6967, u'tag_id': 2033, u'entity_type': u'post'}, {u'quote': u'In 2010 Pakistan was subjected to overwhelming floods which wreaked havoc in the country. More than 20 million people and over 650,000 houses were at the receiving end of this destruction as per Pakistan\u2019s National Disaster Management Authority (NDMA) report. The province of Punjab was greatly affected, the district of Layyah, in Southern Punjabin particular. Rivers of this region overflowed due to the enormous downpour and 15 union councils (UCs) of Layyah were devastated.\xa0\nIn order to reduce the suffering of people from diseases and hunger, a program was developed to\xa0promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled \u2018Rapid Livelihoods Rebuilding via Agriculture & Health\xa0based Livelihood initiatives\u2019 (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to\xa0reconstruct\xa0livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by\xa0flooding.\nOBJECTIVES\xa0\n\nImprovement of livelihood through sustainable agricultural \xa0practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan.\n\nTo establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.\n \nCapacity building\xa0through\xa0provision of trainings and inputs for sustainable development of the flood effected people.\nTo establish local governance through local\xa0economic development\xa0and implementation of project in partnership with local government stakeholders and village-based institutions.\n\nProject implementaion and stratigies\n\n\xa0\xa0Recruitment of staff\n\xa0\xa0Selection of target area\n\xa0 Baseline survey\n\xa0 Orientation & coordination meeting with stakeholders\n\xa0 Formation of community based organizations (CBOs)\n\xa0 Capacity building of CBOs\n\xa0 \xa0Beneficiaries\u2019 identification with the help of CBOs\n\xa0 \xa0Demo plots establishment\n\xa0 \xa0Technical skill enhancement of beneficiaries in kitchen gardening and fodder\n\xa0 \xa0 Agricultural inputs\u2019 distribution\n\xa0 \xa0 Health services and provision of medicines\xa0\n\xa0 \xa0 Evaluation of project\n\xa0 \xa0 Continuous follow up.\n\xa0 \xa0 Continuous monitoring of project\n\nProject Targets\n\n40 CBOs\n40 Demo plots\n10 Rural helath centers\xa0\n20 persons were trained in emergencies handling and care\n10 First aid voulnteers were trained on each localities\xa0\n1400 Persons trained (700 beneficiaries trained in kitchen gardening (70% females) & 700 beneficiaries trained in fodder/vegetable plots)\nDistribution of 700 seeds and 700 tool-kits\xa0\n\nProgress Summary\xa0\nThe main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation.\nAlthough we have started this project in July 2012 with limited team but we have achieved majority targets of project in the short period of time that\xa0\xa0not only show the better planning of project but showed the excellent participation of CBOs and community also.\nCntribution is needed now more than ever to ensure livelihood of the farmers with\xa0 Program continues to serve those in most need. ( Farmers expections)', u'entity_id': 855, u'annotation_id': 6966, u'tag_id': 2033, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 26058, u'annotation_id': 6965, u'tag_id': 2033, u'entity_type': u'comment'}, {u'quote': u'One thing it has brought into stark relief for me is the interplay between using Opencare projects to try to build community [as well as make people healthier], as is often the case with Community Acupuncture projects, and the sort of thing that is possible when strong bonds of solidarity [being poor, being Amish] already exist.\nUnfortunately, in much of Europe, it seems like many people have used rising living standards as a way of stepping out of engagement with community and society - and it is only when economic or other disasters strike that they are forced into connection with one another once more.\nThe best way to deal with the uncertain futures ahead would be for people to start building those localised, horizontal connections beforehand - but the cynic in me suggests that they will always wait until necessity forces their hand.', u'entity_id': 20101, u'annotation_id': 6963, u'tag_id': 2033, u'entity_type': u'comment'}, {u'quote': u'As an Island located in southern Emispher, between the Indian Ocean and Africa. Madagascar is on target of cyclones which is born in the Ocean Indian. The number of this natural catastrophe was changing recently from 4 to 18 or more. All of those cyclones doesn\'t passed through the Island but only the strongest, those who doesn\'t get weak by the way 2 or 3 sometimes . The climate changing from human consumption: forest, petroleum and gas that we spread out (carbonic gas, chemical gas, etc) is growing since the last 50 years. It\'s also a fact of cyclones generator, from Northern Emispher to Southern accompanied by climate changing.\xa0\nEvery year starting on October until February according to the old cyclonic season we have to be also ready for change caused by climate changing. Fixings doors and windows, put some bags of sand one the roof. Get some supplies for those who can afford ( dry food, medicines, batteries, candles and matches, water purifier etc...). Those things are looking like routine for those who knows, It\'s really Important for all of us.\xa0\nNature is really uncontrollable. It\'s happened constantly that crops and plantation are also victim from this natural catastrophe. After "the passage " of cyclon, food rupture and malnutrition are next challenge followed by sickness from dirty water, death.\xa0\n\xa0\nIs there any way to overcome or slowing down this fast extinction?', u'entity_id': 800, u'annotation_id': 6962, u'tag_id': 2033, u'entity_type': u'post'}, {u'quote': u"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?", u'entity_id': 15649, u'annotation_id': 6961, u'tag_id': 2033, u'entity_type': u'comment'}, {u'quote': u'It seems that this is true in\xa0cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa) The above examples are plans for\xa0disasters that occur frequently and regularly in places that share a geographic similarity or border.\xa0It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas.', u'entity_id': 19227, u'annotation_id': 6960, u'tag_id': 2033, u'entity_type': u'comment'}, {u'quote': u'This disconnect between what the French authorities want to achieve with the residents and what the residents themselves want to achieve goes a long way toward explaining the conflict and central problem at the camp.', u'entity_id': 39328, u'annotation_id': 11629, u'tag_id': 727, u'entity_type': u'post'}, {u'quote': u"What I have seen from my exposure to a small institution is caring staff who are doing a good job and have good, close relationships with their service users. However, they are often distracted or overwhelmed by\xa0an ever-changing regulatory framework, as happens in other sectors such as teaching. Ultimately I would like to see the funding from lcoal councils topped up by central government, and this be accepted as the only way to provide decent care. More flexibility from the regulatory body would also help - allowing for more differences in care provision, especially in smaller, more intimate homes; as I've mentioned this does seem to be unlikely given the current standardised, bureaucratic, regulation and\xa0inspection by\xa0checklist...", u'entity_id': 27817, u'annotation_id': 6969, u'tag_id': 727, u'entity_type': u'comment'}, {u'quote': u'There are not many fablabs, makerspaces or \u2018protofablabs\u2019 in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.', u'entity_id': 37182, u'annotation_id': 11789, u'tag_id': 1927, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 16092, u'annotation_id': 6970, u'tag_id': 728, u'entity_type': u'comment'}, {u'quote': u"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming.\nWomen are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation.\nThe violence being perpetrated against girls and women it takes on epidemic proportions.\nAnd instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their \xa0life, their well-being.\nWomen who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ...\nWhat are the primary tasks?\n\xa0To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care.\nThe right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee\nTo be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research\u2026.\nMany seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges.\nWomen \xa0demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed\u2026 crippled\nMany studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor,\xa0The whole society has benefits and profit from that, also\xa0economic empowerment of women can give them the strength and the power to fight for their rights.\xa0What is I have to emphasis\xa0totally crazy, to fight for something that is obvious and should be guaranteed.\xa0But since we live in such a country and such a world, which I will say freely that's gone completely crazy.\nThe first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have\xa0to forget that terrible sentence, you're a girl, you you have to let go, you have to listen, \xa0you must be good,\xa0obedient\nWell, \xa0you do not have to do anything\nBe good and obedient and you'll be good and obedient patients\nIf you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default, \xa0you can be scientist, pilot, astroanut, everything you want\nOf course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing, \xa0to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and \xa0works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable\xa0and smart and successful women, because obviously while men are leding,\xa0we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give\xa0positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is \xa0always something wrong , they have to be perfect to be loved because they are \xa0upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie\xa0and \xa0to be good...\nIt is a great theme, and very serious and \xa0requires indispensable\xa0large and big steps to make the change, so we\xa0won't\xa0any more\xa0read about dark statistics or to be a part of it,\nI forgot about inadequate or not existing\xa0 health status of women and treating them, how horrible gynecologist acting,\xa0a large number of cancers that are not detected at time, shame, \xa0when they\xa0give birth listen insults and so on...\n\xa0I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do\xa0because it is not a choice any more it is our obligation.", u'entity_id': 858, u'annotation_id': 6986, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u"Bearing in mind that Serbia is extremely patriarchal country that many many people primarily uneducated, ignorant, limited by dogma, the church has a strong influence, the police is on the side who persecute\xa0LGBTQ,\xa0laws are not adopted nor respected,\xa0even the media are not friendly.\nBeing different in any sense means to be condemned, discriminated against, rejected. Like\xa0it is not enough that we have to\xa0deal with our\xa0demons and problems, and that's not enough, we have to fight with the rest of the world. And what is worse it is futile struggle, doomed to fail.\xa0\nI'm not a member of\xa0\xa0\xa0LGBTQ,\xa0I can not imagine what is happening in their soul,\xa0I believe it's scary and it's hard, extremely hard.\xa0\xa0I am someone who looks soul who hears the words and I really am not interested in anything else, really can not understand why anyone would be bother by\xa0LGBTQ, I ask why?\nWe are free, to do what we want, right? So why,\xa0Some give themselves the right to determine how we should behave, what to eat, who to love, how to dress, to be socially acceptable, and why we shoud care about their opinion.\xa0Unfortunately these moralists are the majority in our country, fake moralists who point out other people's mistakes to cover up their own, chasing people only that they would not be marginalized, persecution, condemn so they would not be convicted, these are people who also suffer, but they\xa0damage others and society as a whole, ALL of that can be cured.\xa0\nFirst, people need to understand that we are all different, but equal, we all have the right and that nobody has the right to endangers or give us verdict\xa0how we're going to live, that everyone should be looking at themselves and their own\xa0life, to solve their problems and \xa0not to care about other people's problems.\ntell me how\xa0wedding and adoption of a child endanger other families, how sex change threatens others, or dresses \xa0make \xa0someone uncomfortable ????\nImagine\xa0pain of \xa0LGBTQ and you, with your limited minds\xa0consider them ill and reject them and persecute, torture and abuse\n\xa0Our society have to change from the root, I regret and\xa0I am ashamed because I live in such\xa0society and \xa0that situation is not changing\nWe have to change family, education, political estambilsmenta, police,\nthe mind is like a parachute works only when it is open\nit is easier to break an atom than a prejudice\nWe need to do the impossible\nI believe that we can, step by step, it will not be easy,but we simply have to change everything , this is not a life and it is not worth to live like that", u'entity_id': 857, u'annotation_id': 6985, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u'Ignorance and wrong beliefs surrounding disability, compounded with a negative and derogatory attitude of the community (including family members) have contributed to the marginal development in the disability sector in Bangladesh.', u'entity_id': 840, u'annotation_id': 6984, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums.\nWhithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.", u'entity_id': 33752, u'annotation_id': 6983, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u'in certain ways. \xa0Millions of not very bright people who derive their understanding of the world through a mix of TV and their own predjudices and assumptions view the healthcare status quo as being one where they have more individual choice. \xa0(Obanacare = socialism and "death panels.")\xa0Over here that is like a core religious belief, so if you can convince people they will have fewer choices then it isn\'t that hard to get them to oppose it, even though it is not in their economic interest to do so. \xa0Indeed the fact that Ronald Reagan got elected largely with the support of such people is a perennial case in point.', u'entity_id': 28630, u'annotation_id': 6982, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u"My point then is a difficult one to conceed. Although my grandmother is my family and helped to raise me, i find spending time with her very difficult. Her views are borderline racist at times, her attitude to the world is very negative, her experience is narrow and her opinions old fashioned. I am expected to show respect and deference to her based purely on the fact that she is older than me, yet i know my experience of the world is richer and wider than hers. I wouldn't want to be forced into living in that straight-jacket in order to reduce care costs.", u'entity_id': 27819, u'annotation_id': 6981, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11006, u'annotation_id': 6980, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u'Unfortunately, the public sentiment is negative. Mass media shape the opinion that the refugees stopped crossing borders, so people believe that they stopped coming. Others falsely believe that refugees are to blame for anything wrong. And since the beginning of the summer, most volunteers disappeared. This has, inevitably, resulted in a fatigue in the area of refugee care.', u'entity_id': 737, u'annotation_id': 6979, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u'Really hard one: We have a flag over our head, marking our belonging to a certain group of people with common "values", the first one being same nation based on tradition/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don\'t have time/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our "benign\xa0attempts to civilise them"(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.', u'entity_id': 26012, u'annotation_id': 6978, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u"I decided not to break a friendship when I saw a (rather distant) friend of mine was a supporter of a right wing extremist social group on facebook. I guess, like Alberto explains above, I was giving up on any possibility to change their mind. The fact of the matter is, and I've tested it before, that you can't beat emotional arguments with rationality. Honestly, that feels like a dead end.", u'entity_id': 22652, u'annotation_id': 6977, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u"People who believe in cultural purityafter the age of 18? I am afraid they are a lost cause. I do not recommend investing time in trying to change their mind. That's their loss: they are going to miss the music and the food and the laughter and the glorious diversity in Vuka!", u'entity_id': 21716, u'annotation_id': 6976, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u'Well, your friend certainly got me wrongfooted. He thinks we should all keep separate to keep cultures pure, yet there he is, a catholic Slav in an Anglo-Celtic\xa0protestant country. He does not like the idea of blonde girls sleeping with black guys, but I am sure he, like most men of any shade, enjoys the sight of a pretty black woman. Very hard to argue on these basis.', u'entity_id': 21716, u'annotation_id': 6975, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u"It gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?", u'entity_id': 19778, u'annotation_id': 6974, u'tag_id': 729, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 6973, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u'\u201cWe talked about the relationships that we have with people from Syria that we know and the experiences we have with them. We try to know why German people are so scared of foreigners and why the German people are sometimes so closed also in a friendship. For example my first time was not so easy to make friends here, german people are really closed the first time..they are not so open to stangers.\u201d', u'entity_id': 494, u'annotation_id': 6972, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u'Not many of us know how it is to lead a refugee\u2019s life. How many of us have been discriminated against? For me I was born in Germany, but for a moment I thought well all the refugee circus that is going on has nothing to do with me and I thought it is the responsibility of larger organisations like NGos and the Government to deal with...I asked myself what capacity do I realistically have to help. Then I realised that as someone born in Germany, I walk around the street I hear people discriminating against Asians. And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but \xa0to help others and how this is deeply human at its core.\u201d', u'entity_id': 494, u'annotation_id': 6971, u'tag_id': 729, u'entity_type': u'post'}, {u'quote': u"Passing through Kobenhavn airport this morning, a digital advertising screen promoted this month\u2019s \u2018Presidents Summit\u2019 on the topic of \u2018Disruption\u2019: \u201cDisruption will change your job. Disruption will change your company. Disruption will change the world. Join our world leading summit and learn how to lead the change and make sure you are one of tomorrow's frontrunners.\u201d\nThat the idea of \u2018disruption\u2019 has moved from the radical edge of digital culture and post-2008 political insurgency to the topic of a plenary meeting of senior executives \u2013 featuring speeches by Apple\u2019s Steve Wozniak and arch-Brexiteer Nigel Farage \u2013 shows the degree to which the concept has spread through society to become the \u2018new normal\u2019; a sign, perhaps, of just how much the pace of social, technological and economic change has increased since I fretted about the novel impact of moving images on the urban populace.\nBut it also raises the question of how much of this disruption is merely cosmetic \u2013 or, rather, how much the very genuine disruption of ordinary lives only serves to bolster the established iniquities of our current economic and political status quo. If disruption is merely another business opportunity from the playbook of \u2018creative destruction\u2019 capitalism, if the elite response to it is simply to fight harder to be one of \u2018tomorrow\u2019s frontrunners\u2019 (while those who can\u2019t keep up must, presumably, be left behind), then perhaps this is merely another case of plus \xe7a change, plus c'est la m\xeame chose.\nIf so, what would genuine disruption look like? Is it possible that it might look like the opposite of all this? That it might look like a rejection of these kinds of disruption? The stories emerging from the OpenCare initiative suggest that this may be the case. Again and again, the tales that emerge are of a less hierarchical, more empowering approach to health and care; of individualised, human-scale responses to unique instances of wider social problems; of a movement away from the paradigm that measures \u2018efficiency\u2019 of care in terms of speed, throughput or numbers discharged \u2013 measured, in short, on how fast the system can cease to be in relationship with the citizens who have sought aid.\nTrue disruption, then, might not look like the world-spanning, high-octane revolutions beloved of the senior executives. It might look like slowness; like quietness; like a return to engagement at the scale of the human being. It might just turn out that old is the new new.", u'entity_id': 549, u'annotation_id': 6987, u'tag_id': 730, u'entity_type': u'post'}, {u'quote': u'We propose that communities are good candidates for being caregivers, because they are fair (they share the burden across individuals), efficient (allocation of who takes care of whom is based on self-selection: low overhead, you give care when and where you are readiest/most motivated to do so, receive it in the time and domain of your greatest need), and retain a human touch that state-and private sector provided care cannot (you care for your own, etc.). This is predicated on\xa0the givers and receivers of care recognizing each other as one: everyone is part of the same "we". When a person is recognized as\xa0not\xa0part of the "we", the community\'s incentive to care for her fails.', u'entity_id': 28468, u'annotation_id': 7007, u'tag_id': 731, u'entity_type': u'comment'}, {u'quote': u'In Syria we have an \u2018islamic solidarity\u2019 in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven\u2019t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship. \xa0We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.', u'entity_id': 790, u'annotation_id': 7006, u'tag_id': 731, u'entity_type': u'post'}, {u'quote': u'If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we\u2019re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.', u'entity_id': 521, u'annotation_id': 7005, u'tag_id': 731, u'entity_type': u'post'}, {u'quote': u"For providing good opencare \xa0(check the post\xa0No Humane ghost in the machine)\xa0focus should be on shifting administrative tasks from healthcare professionals (called facilitators/mentors in our case), so maybe an App (Buoy?) could let the participant (the patient) check in, filling e.g. private data (address etc), restricted data (pathology, symptoms etc) and public data (satisfaction data, achievements etc.) as well as allocating time slots. What's the state of the art of software for that (@Eireann Leverett, @Alberto,@maymay,@Nadia\xa0)\xa0?", u'entity_id': 24641, u'annotation_id': 7004, u'tag_id': 731, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11456, u'annotation_id': 7003, u'tag_id': 731, u'entity_type': u'comment'}, {u'quote': u"stributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:", u'entity_id': 10231, u'annotation_id': 7002, u'tag_id': 731, u'entity_type': u'comment'}, {u'quote': u'Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.', u'entity_id': 7673, u'annotation_id': 6989, u'tag_id': 731, u'entity_type': u'comment'}, {u'quote': u'Burden of care should be spread among people.', u'entity_id': 5405, u'annotation_id': 6988, u'tag_id': 731, u'entity_type': u'post'}, {u'quote': u'My early encounters with the Edgreryders platform, I\u2019ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it\u2019s at odds with standard linear project trajectories and ways of working. So perhaps I\u2019m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.', u'entity_id': 6462, u'annotation_id': 7018, u'tag_id': 732, u'entity_type': u'post'}, {u'quote': u"Hi @Lucy , welcome on the platform!\nFor this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together.\nWe should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?", u'entity_id': 20342, u'annotation_id': 7017, u'tag_id': 732, u'entity_type': u'comment'}, {u'quote': u"Are you based in Vilnius? Curious how your city, or Lithuania broadly, are dealing with diversity, and whether you look at it as an in-group thing (different groups\xa0within the same nation) or an out group. For example where I come from, Romania, the issue of diversity is treated at the politica/ media level as a matter of ethnic groups among the Romanian nationality. It's\xa0less a matter of incoming, new groups - where things look good in the quiet way:\xa0since we are not exposed to it so much or exposure brings in clear benefits rather than strains (i.e. tourism).", u'entity_id': 33768, u'annotation_id': 7016, u'tag_id': 732, u'entity_type': u'comment'}, {u'quote': u'Years ago, I was living in Milan.\xa0I got frustrated because, though people from every corner of the world lived in the city side by side with me, almost all of my friends were white Italians like myself. WTF?', u'entity_id': 14055, u'annotation_id': 7015, u'tag_id': 732, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 12739, u'annotation_id': 7014, u'tag_id': 732, u'entity_type': u'comment'}, {u'quote': u'\u201cIt was a good experience, I liked meeting people from different backgrounds and the possibility for working together\u2026 Discovering what we each are good and not good at, and how they can fit together. \xa0As well as what these different backgrounds creates as a perspective towards the project\u201d', u'entity_id': 494, u'annotation_id': 7013, u'tag_id': 732, u'entity_type': u'post'}, {u'quote': u'communities with a purpose are very diverse.', u'entity_id': 6759, u'annotation_id': 7012, u'tag_id': 732, u'entity_type': u'comment'}, {u'quote': u'My observation is that many actors in Thessaloniki are active in more than one initiative, so there is this type of "fluid" flowing from one project to the other. Most of these people are characterising themselves as people "that care", and there is a strong sentiment of solidarity. Different groups have different approached on running their projects. For example, there are a few of them that mistrust any type of institutional suppport. This makes some people also get engaged\xa0in another project. The result is a very diverse set of attitudes towards volunteer action and the wider frame of care, something that is making it difficult to map, engage and scale. This is probably the case also in Athens, however communities in the capital have more opportunities in terms of funding, interaction spaces and publicity.', u'entity_id': 11806, u'annotation_id': 7021, u'tag_id': 733, u'entity_type': u'comment'}, {u'quote': u'Aye/yes, a big diverse melting pot of stuff. Not pigeonholing, but allowing each group to have their own identity. It could be more clearly spelled out in our mission, and might do so in time, but also being aware that the arts can draw people in, but health and enironmental issues can sometimes scare people off. More structure and over longer timeframe feature in our recent proposal, but not too ridgid. Care can be tough work. Rest, play and time to breathe hopfully will lead to stronger, healthier, more productive outcomes.\nSpeaking of outcomes... Cos\xe1in are doing an overnight art therapy session with Alan at Cregg Castle tomorrow and Sunday. Also, when promoting "What Now?" I spoke with Claddagh Arts Centre, so when I went looking for help to build an outdoor classroom at the Transition Galway school/community garden, Michael from the centre gave his time, machinery and a very genorous price on stonework. Busy week = very happy school princial:)', u'entity_id': 19435, u'annotation_id': 7020, u'tag_id': 733, u'entity_type': u'comment'}, {u'quote': u'In\xa0passing: I think we are looking at diversity trumps ability. When an activist-designer-manufacturer like you, a material scientist like @trythis and an open source hacker like @Matthias get on a task, it acquires incredible depth. I am reading your lists and thinking not only "how generous!" but "how clever!" and even "wow, this is cool".', u'entity_id': 18440, u'annotation_id': 7022, u'tag_id': 734, u'entity_type': u'comment'}, {u'quote': u'After the first submission, our original project "doc.doc" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually\xa0turned out the early project in ResQ!\n\nIn particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as\xa0emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.\n\n\xa0Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it!\n\n\n\n\n\tOur project in a tweet\n\n\n\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.\n\n\n\n\n\tProblem that our project\xa0is willing to solve\n\n\n\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.\n\nThe current way of working shows the following problems:\n\n\n\n\n\tThe language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.\n\n\n\tThe missing digitalization of the gathered health data and the consequent discontinuity of the healing process.\n\n\n\tThe limited precision of the anamnestic research due to the high number of patients and the short time available.\n\n\n\n\n\tFinal User, individuals and\xa0community target\n\n\n\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.\n\n\xa0https://www.youtube.com/embed/MZSMi316E-Y\n\n\n\n\n\tSolution, brief description of the project\n\n\n\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.\n\n\nResQ-board.jpg2045x2500 640 KB\n\n\n\n\n\n\tTechnologies we will adopt\n\n\n\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.\n\n\n\n\n\tWebsite', u'entity_id': 866, u'annotation_id': 12363, u'tag_id': 2034, u'entity_type': u'post'}, {u'quote': u'Questions that patients have don\u2019t always get answered- What can I do to keep my body in the best shape? What food is best to eat during treatment? These are a few of the many questions that require answers. In the standard 15 minute doctor visit it hard to dig deep and get these answers.', u'entity_id': 35903, u'annotation_id': 11591, u'tag_id': 2034, u'entity_type': u'post'}, {u'quote': u'The personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.', u'entity_id': 33817, u'annotation_id': 7028, u'tag_id': 2034, u'entity_type': u'comment'}, {u'quote': u'alking about the proposal,\xa0I like the idea of helping doctors communicating \xa0more efficiently with each other in order to help patients, as a consequence,\xa0in relieving the weight of their own personal pathological condition. Besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when for instance there might be a language barrier.', u'entity_id': 33771, u'annotation_id': 7027, u'tag_id': 2034, u'entity_type': u'comment'}, {u'quote': u'No platform for documentation yet.', u'entity_id': 38856, u'annotation_id': 11877, u'tag_id': 738, u'entity_type': u'post'}, {u'quote': u'Anthony pointed out one of the aspects in a preparation call for his session at OpenVillage. No one in the team has the time to put into organising or documenting information. So with people dropping in and out (especially experts), knowledge gets lost easily. Counter Culture Labs has made efforts in finding a solution, such as involving an organisational expert, yet without lasting effects.', u'entity_id': 6459, u'annotation_id': 7033, u'tag_id': 738, u'entity_type': u'post'}, {u'quote': u'Makers in residence are supposed to deliver and publish on the web the output of their experience at WeMake.\nFinding the right way to record and develop a innovative and open experience seemed therefore a matter of concern in designing the opencare MIR program.\nDuring the last weeks GitHub, a social network for developers, became a obliged point of passage for some people at WeMake.\nGithub allows to create repositories, communities and webpages (gh_pages), among the main features. Putting a project on github makes possibile for members to contribute remotely and for anyone to view and download it.', u'entity_id': 868, u'annotation_id': 7032, u'tag_id': 738, u'entity_type': u'post'}, {u'quote': u'4) Documentation: what does it mean? for us it has been in writing.', u'entity_id': 788, u'annotation_id': 7031, u'tag_id': 738, u'entity_type': u'post'}, {u'quote': u'4) Documentation: what does it mean? for us it has been in writing.', u'entity_id': 541, u'annotation_id': 7030, u'tag_id': 738, u'entity_type': u'post'}, {u'quote': u'I came across this article about a competition in South Korea where people do, well, nothing and immediately thought of this conversation thread...\n"Since the first competition was held two years ago, it\'s evolved into a full-on pageant with a panel of judges and a set of strict rules\u2014no phones, no talking, no checking your watch, no dozing off. WoopsYang said more than 2,000 people signed up for the 70 contestant slots this year, and she had to hold qualifying rounds to select the best candidates."\nFull article available here: http://www.vice.com/read/doing-nothing-has-become-a-sport-in-south-korea', u'entity_id': 27792, u'annotation_id': 7034, u'tag_id': 739, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 7035, u'tag_id': 740, u'entity_type': u'post'}, {u'quote': u'Helliniko clinic without legal or taxable status - which is one of the reasons why\xa0they are\xa0not accepting donations in money.', u'entity_id': 13940, u'annotation_id': 7037, u'tag_id': 741, u'entity_type': u'comment'}, {u'quote': u".. (call it what you want)\xa0is that it makes it easier to see how/ if it would\xa0translate to\xa0other groups or settings. What we don't know about the ER style of\xa0do-ocracy yet is how it would work in a real life, physical place that is not an infinite playground or resource after all - that's why I asked @marcoclausen\xa0about ruling over\xa0the vegetable beds.", u'entity_id': 22469, u'annotation_id': 7026, u'tag_id': 736, u'entity_type': u'comment'}, {u'quote': u"Agree on all fronts, @marcoclausen . After three years of do-ocracy in Edgeryders, we are not blind to its flaws. It comes down to the lesser evil, I guess. It kind of works with us, but I would definitely not try to implement it at the nation-state level, at least not without major major revision!\xa0\nHowever, do-ocracy is itself\xa0a set of rules. I like to think of it in terms of Protocol, a word that we used a lot when working on the unMonastery:\xa0https://edgeryders.eu/en/unmonastery/protocol-01-engineering-human-to-human-interaction-for\nI am familiar with Graber's work, and, like you, I enjoyed it too.", u'entity_id': 21673, u'annotation_id': 7025, u'tag_id': 736, u'entity_type': u'comment'}, {u'quote': u'usual do-ocracy judo: "Ah, you\'re right. How about you set the whole group up with a tool that everyone, including you, can live with? We are happy to shift, if you put in the work yourself!". But this is a group of advanced doers, hacker ethics and hacker skills. It does not always work.', u'entity_id': 18826, u'annotation_id': 7024, u'tag_id': 736, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 7040, u'tag_id': 742, u'entity_type': u'post'}, {u'quote': u"Similar to @Alberto, \xa0I'm curious your experience\xa0with this so far. Spoken-word is a passion for me and I've definitely seen the power it has to give an outlet for\xa0people's voices.\xa0\n\nI also wonder if you have looked into any other creative mediums for creating common ground? One thing I am looking into in this realm is Theater of The Oppressed. Maybe this upcoming webinar would be of interest to you?", u'entity_id': 33802, u'annotation_id': 7039, u'tag_id': 742, u'entity_type': u'comment'}, {u'quote': u"to look at impact and direct KAP (knowledge, attitude and practice) changes. This is a near impossibility in its own. The way I've sought to study the efficacy of drama as a method was to\xa0study variations of drama presentation including: deep characterization of characters; involving comedy in messages; shorter repetitive chanting or messaging in plays; plays in controlled environments to an invited, anticipating audience; pop up plays in local clinics to unsuspecting audiences. We interviewed persons with a set of questions focused on specific health messaging (i.e. TB and HIV focused) before and after plays.", u'entity_id': 33803, u'annotation_id': 7038, u'tag_id': 742, u'entity_type': u'comment'}, {u'quote': u'More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.', u'entity_id': 25049, u'annotation_id': 7042, u'tag_id': 743, u'entity_type': u'comment'}, {u'quote': u"For the support of Fairbnb outside big cities, I think two are the consideration needed:\nThe first is that Fairbnb should help valorize places that are underrated.\nFor example, I'm from Italy (from Rome) and in my opinion, there are so many little places that are worth visiting, is really upsetting knowing that just a few cities here have the attention of international travelers.\xa0\nFor example, I rarely suggest to go in Rome (especially if you are young), go to Sicily if you can :)!!", u'entity_id': 25049, u'annotation_id': 7041, u'tag_id': 743, u'entity_type': u'comment'}, {u'quote': u"The drone would pick up samples and could do deliveries, and could intermittently cover a very large region. Its visit frequency would probably be limited mostly by charge time of the electric drive via solar (needs approx 1kWh for a 100 km flight with 3 kg payload). I've made two low budget rugged versions with slightly different concept of operations here", u'entity_id': 16393, u'annotation_id': 12366, u'tag_id': 744, u'entity_type': u'comment'}, {u'quote': u'" Drought is a serious issue in the western Indian state of Gujarat, particularly for underprivileged female farmers whose livelihood depends on the monsoon. Limited rainfall in the state leads to water logging in peak cropping season. For the rest of the year, farmers experience severe water scarcity. But thanks to a life-changing technology, poor farmers are now converting crises into opportunities. Bhungroo is a water management system that injects and stores excess rainfall underground and lifts it out for use in dry spells. "', u'entity_id': 26045, u'annotation_id': 7053, u'tag_id': 745, u'entity_type': u'comment'}, {u'quote': u'2) Where community health workers can come in for complex health conditions is in coordinating access, screening, and adherence to treatment. For example, with HIV. Thirty years ago, the World Health Organization suggested that delivering HIV care to the ultra poor was \u201ctoo difficult, that there wasn\u2019t enough money, it was too difficult to get people to adhere to medications out in the community.\u201d Partners In Health (whose work is very influential for us) showed that community health workers can support people in adhering to HIV medication.\nSame for TB. They proved that if you make the drugs available, you can even support the treatment of Multi-Drug Resistant TB through CHWs\u2013 where you have to take drugs daily for almost two years (and they have terrible side effects). Again, this is through trained community health workers in a process they call \u201caccompaniment,\u201d where CHWs are following up every day, providing support and guidance and ensuring that people are taking meds. In India, there\u2019s been a lot of success with the Home Based Newborn Care protocol which provides guidance to community health workers around the first 45 days of life and navigating the major risks to a child\u2019s life during that period.', u'entity_id': 564, u'annotation_id': 7054, u'tag_id': 746, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 19200, u'annotation_id': 7055, u'tag_id': 747, u'entity_type': u'comment'}, {u'quote': u'olunteers in The Jungle are sad, broken, exhausted. Why don\'t they go home? "We feel responsible", says Alex. Not good enough.', u'entity_id': 21551, u'annotation_id': 7061, u'tag_id': 749, u'entity_type': u'comment'}, {u'quote': u"Days off from the work of the warehouse and camp are encouraged, and even scheduled. But they are ignored, rescheduled, or simply don't happen. People feel responsible for the people on the camp. They can't switch off.", u'entity_id': 536, u'annotation_id': 7060, u'tag_id': 749, u'entity_type': u'post'}, {u'quote': u'I think i initially went out to help because i had a sense of purpose. I fesire to use my skills to help people most at need of them.', u'entity_id': 16022, u'annotation_id': 7059, u'tag_id': 749, u'entity_type': u'comment'}, {u'quote': u'Interesting how being a\xa0caregiver comes not just from sense of purpose or attachment, but a sense of duty.', u'entity_id': 9328, u'annotation_id': 7058, u'tag_id': 749, u'entity_type': u'comment'}, {u'quote': u"We are nomads, troubles makers, philosophers, witches, technoshamans, from all over the world, but also activists, hackers, economist, entrepreneurs, ethnologists, Pirate radio hosts, artists, performers, biohackers, feminists, engineers, community builders, medical doctors, academics, urbanists and scientists/wizards of all colors and continent. A subtle mix of individuals >> for once NOT ONLY TALKING about the fake sharing economy and how do we make money in these transitional times or how silicon valley is such a great model for the world to copy, or how technologies and transhumanists are going to save the world.... it's important to notice that we are not in 2000 anymore because our world have become pretty dystopic now...we need other stories and incentives, I think Edgeryders is onto something and it took me some times to realise...seeing all these beautifull people was refreshing...I was not borred", u'entity_id': 38808, u'annotation_id': 11759, u'tag_id': 1919, u'entity_type': u'post'}, {u'quote': u'Research, and "citizen science", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.', u'entity_id': 23523, u'annotation_id': 7075, u'tag_id': 752, u'entity_type': u'comment'}, {u'quote': u"Yes @Alberto that's the key and why we do a FES cycling event. We also need marketing guys to promote and recruit (we have not been effective at that). Can you or others help out?", u'entity_id': 26960, u'annotation_id': 7074, u'tag_id': 752, u'entity_type': u'comment'}, {u'quote': u'scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition \u2013 it is unusually flat for Italy, and that helps.\xa0When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness.\xa0Bicycle lanes where almost absent. As a consequence, only "extreme cycling" happened: young, fit\xa0men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this:\n\nBut over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles\xa0a day.\xa0Eventually, the city council started to take\xa0cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.\xa0\nWhat this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of\xa0early adopters that pave the way (literally, in this case) for everyone else.', u'entity_id': 26048, u'annotation_id': 7073, u'tag_id': 752, u'entity_type': u'comment'}, {u'quote': u'Well done Marco, @Irene_Lanza\xa0& Henrik. And welcome on board to Irene, new Edgeryder.\n\nI\'ve only heard of teaching echolocation "manually" via examples like Daniel Kish\'s ("Batman") school for children. And through handheld devices and more recently a mobile app (?), but those are mediating the environment, as you rightly point out. Kudos for the open approach, and thinking about community members who might be interested in this.\n\nMaybe Alison Smith from Pesky People..? hm.', u'entity_id': 6898, u'annotation_id': 12553, u'tag_id': 756, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 7079, u'tag_id': 756, u'entity_type': u'post'}, {u'quote': u'Many blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight. \xa0The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities.', u'entity_id': 701, u'annotation_id': 7078, u'tag_id': 756, u'entity_type': u'post'}, {u'quote': u'This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles', u'entity_id': 732, u'annotation_id': 7077, u'tag_id': 755, u'entity_type': u'post'}, {u'quote': u"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the \xa0creating a benefit to the community:\nhere's the story:", u'entity_id': 33744, u'annotation_id': 7091, u'tag_id': 758, u'entity_type': u'post'}, {u'quote': u'I honestly think this is a very interesting and practical idea. The ones involved in this activity didn\u2019t only help those people be more comfortable with the weather conditions from there. You helped the environment too. (Now I\u2019m thinking about the long time that it takes for plastics to biodegrade \u2013 such a well-known problem.) You basically killed two birds with one stone. I think this is the kind of initiative we all need to solve the problems around us. So happy for this! Well done!\nAlso, are you planning to extend this project into other countries or regions? Do you have the resources? I\u2019m very curious.', u'entity_id': 33790, u'annotation_id': 7090, u'tag_id': 758, u'entity_type': u'comment'}, {u'quote': u'There seems to be some interesting stuff happening in fringe genres, like erotica and my favourite, hard sci-fi. But yes, that\'s anecdotal. I have dropped out of studying that stuff since, and moved onto greener pastures. Which itself is a kind of anecdotal analysis.\xa0\n"Long tail" markets would feature many niches, each one with the economies of scale in consumption aforementioned, but making space for more artists just by virtue of being many. So your question is theoretically valid, but I do not know the answer.', u'entity_id': 32276, u'annotation_id': 7094, u'tag_id': 759, u'entity_type': u'comment'}, {u'quote': u'There were a lot of promises a few years back that the internet would make many more people able to be sustainable successful at a smaller scale [curating a fanbase of a few thousand fanatically-loyal people, say, while presumably supplementing income from art with other jobs and roles], and I know of a few anecdotal examples of artists doing just that, but my general impression is that those promises were not delivered on.', u'entity_id': 32275, u'annotation_id': 7093, u'tag_id': 759, u'entity_type': u'comment'}, {u'quote': u"Trained as an economist, having been a professional musician for several years in the 1990s, I looked up economic literature about the arts. The intuition most relevant to your point (and the whole thread) is this: art is defined by economies of scale in consumption. It works like this. Imagine you like classic two guitars-bass-drums rock music. Well, that technology scales really well: you can enjoy a rock concert in a bar with an audience of 30 people, or in a football stadium with an audience of 80,000. The costs of giving a concert increases in the size of the audience, but much slower than the ticket revenues. If you double your audience, your profit does not double: it goes up fourfold, or even tenfold, depends on where you start. Markets with these characteristics are called winner-takes-it-all: they produce few superstars, with everyone else doing badly (Rosen's classic 1981 paper). While stars tend to be very talented people, it is simple to build a model that takes performers with\xa0identical\xa0characteristics, and then makes one or a few of them superstars, and discards the others. Initial lucky breaks are reinforced by the success-breeds-success dynamics. We need a hairdresser every ten blocks, because people go to different hairdressers. But very few stars, because we all watch/listen to/read the\xa0same\xa0ones.", u'entity_id': 32197, u'annotation_id': 7092, u'tag_id': 759, u'entity_type': u'comment'}, {u'quote': u'We need a hub to share ideas, thats where I hope OpenCare & Edgeryders come in.', u'entity_id': 12142, u'annotation_id': 7100, u'tag_id': 763, u'entity_type': u'comment'}, {u'quote': u"This all also reminds me of how important it has been in recent years that people with 'non-ordinary' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the 'normals' about their own unique experiences:", u'entity_id': 29955, u'annotation_id': 7101, u'tag_id': 764, u'entity_type': u'comment'}, {u'quote': u'Hey Edgeryders,\xa0\n\nI\'m developing a course to become an energetic master and conscious creator. It\'s a self care course to become aware of how beliefs and perceptation relate to how you feel. Here\'s a first video I shot last week.\xa0\n\n\n\nConscious creator from Ewoud Venema on Vimeo.\n\nYou can find a more elaborate on my Academy where I\'ll continue to share these courses (probably). I hope you find it inspiring and clarifying. If you like them, you can subscribe to my newletter or follow me on vimeo.\xa0\n\nLet me know how you feel!\n\n@benmoore?utm_medium=referral&utm_campaign=photographer-credit&utm_content=creditBadge" rel="noopener noreferrer" style=\'background-color:black;color:white;text-decoration:none;padding:4px 6px;font-family:-apple-system, BlinkMacSystemFont, "San Francisco", "Helvetica Neue", Helvetica, Ubuntu, Roboto, Noto, "Segoe UI", Arial, sans-serif;font-size:12px;font-weight:bold;line-height:1.2;display:inline-block;border-radius:3px;\' target="_blank" title="Download free do whatever you want high-resolution photos from Ben Moore">\n\n\n\nBen Moore', u'entity_id': 876, u'annotation_id': 12570, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Combating failure in education', u'entity_id': 6293, u'annotation_id': 12569, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Hey @Gentlewest let me post a very technical picture here which has lots of stuff in there (we will probably not even need half of that). This is most of the hardware I have collected around the general idea already.\xa0 I can explain it all in detail, but probably it is best to discuss what you actually NEED first.\n\n\n20170626_120731 (2).jpg2500x1608 404 KB\n\n\n( @Matthias can you increase upload limit a tad, my new phone camera spits out 5.2 MB... this cost me 3 attempts and 30 minutes. Also mentioning this because it is still related to the project we discussed in Nepal context ).\n\nThia here includes many spare parts, a small radio station, a powerful loudspeaker, voice recorders to takes tests and get feedback, etc.\n\nI like your idea about including music - and I had thought something similar. On Jamendo.com we could get free music without any legal trouble. Because the mp3 players are relatively simple (you can only go forward or backward by one complete track) one could put the lecture before the music in the same track. So they would have to listen to the lecture before they get to the music. This will be some extra work in the beginning but I think you made a good point. It is possible to do ALL KINDS of sound editing in a program called audacity (http://sourceforge.net/projects/audacity/) but I think it would be good to find something more simple.\n\nAnother thing one could offer are more or less educational stories - e.g. for language courses (e.g. from Librivox.com). But all that is a different topic.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentaudio recording\n  \n    \n    Edit\n    Delete\n  \nNo Commentdesign intervention\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 28471, u'annotation_id': 12568, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Hi @mariekebelle\n\nI may need a bit more information before even trying to share any suggestion...\n\nFirst thing, I would like to ask you to confirm my understanding.\xa0There are two separate issues that would need to be faced:\n\n1) how to enroll in a doctorate while being classified a refugee [this one should be reasonable]\n\n2) how to enroll in a doctorate as an already senior professional\n\nThe latter\xa0is a bit complicated. In my limited experience, most EU doctoral programs are biased towards young, highly competitive candidates. Usually, more senior individuals access doctoral tracks by tertiary funding (e.g. the company hiring them covers the full university costs, and maintains them on payrol).\n\nCan you share with us how the idea of a PhD was selected, among other alternatives? Is it for the student status/visa? Or for the need to receive economic support? If their titles/certificates are at hand (which I presume, since they do not want to enrol in a bachelor, but in a doctorate), why not seeking a professional position (lecturer, lab technician, ...)? If they have tried and failed, could you share a bit more about this, to figure out what is the situation...\n\nIn general, no one size fits all in academic careers... It\'s my humble opinion, but for the double issue you are bringing to our attention,\xa0I\xa0am somewhat skeptical that anyone will be able to say "get in touch with X" or "look up on Y"... each solution will be custom tailored on the history and professional profile of the person. I hope to be able to help you doing the latter.', u'entity_id': 14667, u'annotation_id': 12567, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Hey @WinniePoncelet! The fact that you could set up an education program in addition to your biohack space says a lot with respect to how open you keep your initiative. With questioning sources of funding, why do you guys feel the need to position yourselves so clearly? Do you have to choose how much anti something like government you are?\xa0Have you had opportunities to work with big biotech and passed?\xa0I\'m\xa0curious because it looks like\xa0hacker values are there\xa0from ReaGent inception - openness, freedom, passion.. so even if the model changes or mixes government funds with revenues through lab\xa0membership or\xa0classes you will still be operating under those things.\xa0\n\nWith Edgeryders we had always had\xa0some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It\'s somewhat natural, as long as the work is aligned with our mission\xa0and speaks for itself.\n\nOr:\xa0Is bioengineering these days\xa0\xa0so controversial that you need to be firm about what you are willing / not willing to do and who you\'re doing it for?\xa0\n\nI would recommend you read a short piece about selling as a moral act by @lasindias and invite @Juanjo_Pina who is experienced in activist market production\xa0to give a piece of advice. In the past they were asking if the market is\xa0the "ultimate alternative to the enclosure of fresh ideas into the dependence of public money or a way for converting activist into established business people"?', u'entity_id': 7536, u'annotation_id': 12566, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"Hello everyone, as a followup to my previous post on education,\xa0I want to dive a little deeper for our Fellowship post.\n\nReaGent is an open biolab where anyone from any background can tinker with biology. We organize practical workshops for children from all backgrounds to get them in touch with biology in a fun way. We do this because the role of biological technologies will become increasingly bigger as we move towards a circular society. Education plays a fundamental role in allowing people to be a part of this process.\n\nWhy are we doing this? My personal motivation is best shown through\xa0a memory from my biotechnological engineering studies. We went on a company visit to Monsanto. At the time, I was not particularly aware of the dirty business they were in. We got to see the production facility, water treatment installations and large glyphosate tanks, which are all used to produce Roundup. During the luxurious lunch, which Monsanto employees also attended, a fellow student whispered to me: \u201chow can they sleep at night, considering they work for such a questionable company?\u201d. That was the only thing that I heard about the issue from anyone at school, both teachers or students. I didn\u2019t (now to my shame) know anything about Monsanto at the time and had to look it up myself afterwards. I was baffled and disgusted. What are we teaching our students?\n\nAside from the perspective we teach, relevance is important as well. I hated biology in high school. If you had told me I\u2019d be a bioengineer someday, I would have laughed in disbelief. The content of biology class often remains descriptive (you\xa0learn about the parts of a plant cell), while higher education and jobs are all about application (you use these plant cells to grow something useful, like a building). A child that likes\xa0engineering, design and coding should consider\xa0studying biology. This is fundamental if we want enough people to develop sustainable technologies for the future.\n\n\nIMG_20160831_204348_0.jpg2500x1875 357 KB\n\n\nReaGent has been going for about a year. We\u2019ve experimented with several ways to bring biology closer to society. We've had children work with enzymes, build\xa0their own microscope, extract DNA and much more.\xa0The coming year, we will expand to reach more children and this scale-up entails several challenges.\n\nCell division\n\nAs a first step, we have decided to continue the project under a new name: Ecoli. The DIY biolab in Ghent will stay as ReaGent, while Ecoli will provide biology education to children and underprivileged groups. A DIYbio space or biohackerspace and child education are not very compatible regarding administrative or legal aspects, like insurance and licenses. Another reason for the split is the different story we want to tell.\n\nThe story to inspire a citizen scientist or biohacker is different from the story to inspire a child. Moreover, DIYbio has had issues with public perception. We find it important that knowledge is spread equally and that everyone can participate in an open discussion. We would not like a distorted image to shape decisions and opinions of people, leading them to self-censor and potentially miss out on learning opportunities.\n\nThe creativity, mindset and ethics\xa0present in a DIYbio lab strengthen and form the way we educate. We feel like we get the benefits without the drawbacks if the DIY biolab and educational project are two separate entities.\n\nFunding education in a fair way\n\nThe question that I posed in the initial post\xa0was on how to fund education outside of, but as an addition to, the traditional state-funded system.\n\nMaking a project like this financially sustainable is a challenge. The groups where we have our biggest impact, and thus create the most value, are also least capable of paying for it. We have set up a way to partially fund this by doing workshops in the classical school circuit. Our impact there is equally important and they can afford to pay (a little) for our services. It remains to be seen if we can sustain ourselves in the long term.\n\nChances are, we\xa0will\xa0have to find funds elsewhere \u2013government or industry. Government is the obvious choice, since education falls under their responsibility. Though, as often with government, it would be na\xefve to count on funding. Additionally, it entails somewhat of an administrative burden (especially in Belgium and the EU) and it\u2019s a slow process.\n\nSo, do we want to cooperate with big biotech companies? How will this affect what we want to achieve with Ecoli? Do we risk that public opinion, or opinions of parents, ultimately influences\xa0what a child learns? Biotech has plenty of shortcomings \u2013funding and market mechanisms, ethical,\xa0ecological\xa0and the list goes on. But it\u2019s a technology, a tool that can be used for good and bad. The drawbacks that I mentioned are effects of the way it is used and not inherent to the technology. If we are scared of biotech, it is because we are scared of ourselves, and rightfully so.\n\nWe still have the option of telling a nuanced story. Especially if we can highlight these issues during education, which is a rarity. My personal Monsanto experience is only one example.\n\nCaring with science\n\nMore fundamentally, care is everyone\u2019s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible\u2019s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it\u2019s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there\u2019s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it\u2019s communicated.\n\nThis is only one of plenty of groups that don\u2019t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover.\n\nBeyond the tools\n\nWe are likely at the start of a similar revolution like the digital revolution. That means we have the chance to try and anticipate this time round; to try and prepare people; to embed values, like openness and inclusiveness, that make sure we don\u2019t need to fix the problems of accessibility and literacy afterwards.\n\nWhat we do can be considered an experiment and in many ways, it\u2019s not necessarily about biology. We hope that, in addition to growing a basic biological literacy, we help to build\xa0a shift in attitude. When we watch global developments, it is clear that the biggest problems we face don\u2019t require technological solutions. Even problems that are directly caused by a misuse of technology, like climate change, could be headed towards a solution by changing our attitude, especially when combined with more sustainable bio-based technologies. A change in behaviour is not likely to happen overnight, but if we can build institutions that promote caring, collaboration and trust, we might be on our way.\n\nWe are engaging with the Edgeryders community because we hope our actions can be part of a bigger solution. One where different actors work on improving their respective fields. By sharing experiences of our project with the Edgeryders community we hope we can grow more resilience for everyone.\n\nWe will be attending the workshop in Brussels on the 24th of September and would be delighted to meet you!\n\nIf you connect to our story, let us know! We love feedback and discussing the subject. Here\u2019s some other questions that occupy our mind. Should this type of initiative stay an addition to the state-funded system? Is this form of bottom-up activism, independent of the government or in spite of it, ultimately a desirable strategy?\n\nThe production of this\xa0article was supported by\xa0Op3n\xa0Fellowships\xa0-\xa0an ongoing program for community contributors\xa0during May - November 2016.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentcitizen science\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 530, u'annotation_id': 12562, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"@Big_Bang_Schools welcome from me too!\n\nI'm\xa0a bit late to the party, but I'm curious if you also work with secondary and high schoolers? My mum teaches at a pretty mainstream school in Romania and was just telling me the other day that they would love to partner up with schools abroad for creative exchanges betweel pupils. Is that something you would consider? Also, if you're involved in international educational projects and could use a partner in this area, let me know!", u'entity_id': 21394, u'annotation_id': 12561, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'One very illuminating aspect of this work is that the focus goes beyond the individuals directly involved. TICAH has looked to help educate the wider community to understand what had happened and how to support it. This was necessary as without\xa0 intervention communities often closed up, and rather than accepting the survivor back into social contact they viewed the returning survivor with unease and distrust, creating a situation in which survivors sometimes found themselves ostracised, left to deal with the experience alone.', u'entity_id': 553, u'annotation_id': 12559, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Me, Mayor (lol)\u2026I am Cameroonian and 34 years old. I don\u2019t want to expose the political environment of  my country here. But for a few notes, our President has spent 35 years in power (older than me) ; officially multipartism exists, but the President party is like the unique ; be Mayor means join this Party. And frankly, I am not sure that I will feel comfortable in this system. That is why I work directly with the community through advice and education and my philosophy is that local developement can be ensured only directly with/and inside the community. To support my action I have created in 2010 this school (legal) http://www.zikulumarie-claire.com/, with like 250 students every year. In this school I am doing formal education (nursery and primary) like that, I am training our future leader. I am doing informal and long life education through workshops and seminars, to empower people. I am also doing hygiene sensibilisation, with my mother, who is a retired nurse, we used to run this course : EVA (Education \xe0 la Vie et \xe0 l\u2019Amour), for sexual hygiene. @noemi  I have too much to tell, but through these actions, I feel my impact more tangible and authentic than to be mayor under this system. Perhaps one day, if the system change.', u'entity_id': 37591, u'annotation_id': 11818, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'A powerful weapon is education. Imagine: introduce biohacking in the curriculum. What would happen after 10 years, 20 years? How could we do this, since our governments seems inactive? For me the first thing is to hack textbooks by writing ourselves. I did it through this platform : http://www.fabrel.org/.', u'entity_id': 37182, u'annotation_id': 11793, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"I hope we can 'break out' more with these ideas, especially with the next generation!  I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)!  It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentconnecting with schools\n\n  \n    \n    \n      Cancel\nSave", u'entity_id': 38981, u'annotation_id': 11734, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Back to schools, though. How can we get these ideas, and practices, into mainstream secondary education? Perhaps through, first, alternative education and home schoolers sharing resources? If we did manage to get into mainstream education, that would be such a powerful springboard into the hearts and minds of young people.', u'entity_id': 38977, u'annotation_id': 11730, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'engineers', u'entity_id': 39334, u'annotation_id': 11668, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'I think it would be great to work with schools and underserved kids! Fly fishing is based on using flies that duplicate the insects and bait fish found in bodies of water. By understanding and looking at the fauna found in local streams and by discussing the fragility of that environment, student can make connections between their actions and how government and industrial actions affect their local bodies of water. It is important to make a connection between the students and their environment. This can be done by simply walking into a stream and turning over some rocks to see what is clinging to it.\nfly casting and tying flies are other activities that can be done to connect to this. There is a Royal Casting Club in Brussels plus other organizations that\xa0could help us with these activities.\nMore activities is also possible to link to other schools through Zoom and Hangout.', u'entity_id': 28454, u'annotation_id': 7160, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"I think a demo session would be nice and can tie in with more educational content. Finding a school should be doable, if it's on a Friday. Weekends can work as well, then you could involve an NGO working with underprivileged groups. Practically, what more would be needed for such a demo @albertorey ?\n@NiekD will also share his personal take on education as care online soon. @Damiano also mentioned his interest in education and linking it with biohacking. When the discussion gets going, we can see how we shape a session (or several) from this.\nMeanwhile I have been in contact with people on water quality, a response is on its way.", u'entity_id': 27447, u'annotation_id': 7159, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'As I mentioned, we provide a three day conference here in the States called "Children in the Stream Conference" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to "hook" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young\xa0 age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here\'s an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).', u'entity_id': 26938, u'annotation_id': 7158, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Citizen science and education meet where the educational value of citizen science is taken into account. In the traditional sense, this educational value would be used as a justification for scientists to do citizen science: the masses may learn from participating in research, even if this is done in a menial way. Yet the reasoning should be the other way around: how do we make scientific education resemble citizen science? It promotes skills like creativity, problem-solving and civic mindedness. This connects to other educational reform initiatives that seek to promote the same values, as well as other soft skills.', u'entity_id': 6372, u'annotation_id': 7157, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 7107, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'would like to share how complicated schooling and university education is in Madagascar, and how people are going about it,', u'entity_id': 746, u'annotation_id': 7108, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"Hi @Mishel! What about alternative schools?\xa0Solidarity teachers and maybe school from distance. Through radio or internet if it's possible. And not only typical lessons but also music, dance, poetry e.t.c. What about libraries in Magadascar?", u'entity_id': 10044, u'annotation_id': 7109, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"Hi @Aravella, \xa0Alternative school is never been taken before. \xa0The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again. \xa0Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime. \xa0Communal Library is rare, there are old books since 70's to 90's sometime \xa0no book but lot of dust and ruins.", u'entity_id': 11993, u'annotation_id': 7110, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Wow, @Michel , that seems to be a difficult problem. Infrastructure as basic as what you describe for Madagascar is out of my experience (I lived in Europe my whole life).\xa0\nAll I can say is that the whole opencare thing is really not relying on government. The stories you read here are all stories of self-sufficiency somehow.\xa0\nEducation, peer to peer, in a developing country: this sounds like a project @Matthias is developing in Nepal. He calls it "pocket university". Matt, do we have a link to the idea yet?', u'entity_id': 13915, u'annotation_id': 7111, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'If you want to integrate activities that help prepare yourself for an acute or creeping emergency I think in many ways going camping, hiking, or something like the boy scouts are helpful to get people started. Basically you get used to the idea of getting by with less infrastructure. This of course does not address the myriad of other issues you may be facing, which can require quite different preparations.', u'entity_id': 13506, u'annotation_id': 7112, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"To keep it really brief I'll just lay out the bare bones, though in application it could be tweaked in very different directions (education, journalism, anthropology/ethnography).", u'entity_id': 26057, u'annotation_id': 7113, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 7114, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"That is a beautiful example of this harmful shift towards 'control' and 'planning', inspired by uncertainty and distrust, while we should be shifting towards a dynamic\xa0interplay between 'noticing' and 'steering', inspired by best estimates and trust.\nI do think that institutions and companies are (perhaps unknowingly)\xa0looking for these qualities\xa0when you see trends in expectations set by job offerings, although they use different words. Yet ironically, those companies and institutions seem to lack the 'noticing' and 'steering' qualities to realise what they are actually\xa0looking for and thus be good at recruiting the people who have what it takes.\nYou have a good point about isolation and depreciation of skill sets. Keeping your workforce up to date entails both education and turnover.", u'entity_id': 30485, u'annotation_id': 7115, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'in mind is summarized in the following fields of action:\n\n\nAssist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible.\n \n\nIn collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides.\n \n\nSave Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land\u2019s status as a common good.\n \n\nIncrease awareness and offer technical support, training, and tools to create CSA schemes around the country.\n \n\nPromote the creation of Food Policy Councils around the country.\n \n\nBecome the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources.\n \n\nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes.\n \n\nSo if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces', u'entity_id': 560, u'annotation_id': 7116, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"Hi Noemi, thanks for that video. The instant sound of kombucha slime landing on that table blasting through my speakers made me laugh out loud during my morning coffee. An example of a workshop is a DNA Cluedo (or Clue?) game where children in group have to solve a murder using biochemical and forensic techniques. We haven't crossed any language borders yet, but hopefully we will in the future :). We're now going to start testing out in what way we can work together with schools. So far it seems like they have very limited means. We will try and make it work regardless, the way you mention might work. Thanks for the tips", u'entity_id': 17283, u'annotation_id': 7117, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'I am a member of the Inaugural Class of Minerva Schools at K.G.I., as well as Minerva\u2019s, Mental Health Services Programs Coordinator for Berlin and Buenos Aries. Which sounds great, but seriously, what the heck does that even mean?\nMinerva is a new university that aims to reimagine the paradigm of higher education, based on the science of learning. All classes are seminars, with a flipped classroom structure. Meaning that we students, learn the content on our own and spend time engaging with the deeper concepts behind the material. Moving the emphasis away from the professor teaching and instead towards students learning.\nAll of this is facilitated by Minerva\u2019s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students. \xa0\nThis unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students\u2019 mental health and wellness! Minerva students\u2019 have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities.\nAccessibility of Resources:\nIn the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late.\n\nThis has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues?\nThe answer is Cultivating Care through Community!\nThis is where my work comes in. As a student working on the school\u2019s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.\nIn addition, it\u2019s no longer enough to focus solely on the counseling department\u2019s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed.\nThe Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their \u201cMinerva Talk\u201d, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.\n\xa0\nWhile we still working on figuring out a lot of how we address student well being (and build this university) it\u2019s become clear that the future of student care must be holistic and not just reactive.\n\xa0\nI\u2019m curious to hear your thoughts and also what you are working on! Please connect with me or comment below.', u'entity_id': 724, u'annotation_id': 7118, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge.\nEurope's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population.\nThe rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future.\nEducation, learning & the value of teenagers\nTraditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways.\nTeenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant.\n\xabFuture Tools\xbb project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. \xabFuture Tools\xbb is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation.\nProvide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways \xabFuture Tools\xbb will engage people in fostering a society with greater equality, solidarity and sustainability.\n\xabFuture Tools\xbb is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood\u2019s daily activities and funnel the parents\u2019 interest in social promotion for their kids towards a more inclusive society.\nThe abundance of open resources that can be freely accessed through personal learning environments to learn digital skills \u2014such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world\u2014 is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future.\nNeighboring environment\nThe neighborhood as a community comes to relevance in the task of \xabhelping grow adults\xbb. The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities.\nIt is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community.\nIt is sometimes sad hear stating that what is being promoted for innovation in the field of education \u2014on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other\u2014 are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.", u'entity_id': 796, u'annotation_id': 7119, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"I like this idea of neighborhood driven education. In my home town we are also planning a project in this direction, so I will follow these stories\xa0with interest :).\xa0\nThe correlation between how you teach and what a child learns and ultimately\xa0which kind of person\xa0it becomes is a hard one. There's so many different opinions on what is the best way of educating and each seems to have its merits. In practise there's already quite some alternatives - at least in Belgium - like Steiner and Freinet schools. My experience with those schools is limited and I have not seen miracles. How does\xa0your philospophy\xa0relate to the existing alternatives?\nLike @Noemi says, it's a hard case for radical changes. That's not necessarily a bad thing. There needs to be room for experiment, but education is important enough that we should\xa0prevent major failures, even for a small group. The norm will shift slowly as educators themselves learn. I think it's that learning aspect that makes the difference. I hear the saddest stories while working with children. Usually it's\xa0educators lacking insight in themselves and their practise, as well as a very static approach to their profession. They are factory workers: follow the protocol, complete the checklist, get good numbers.\nHowever, more and more\xa0teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am\xa0surfing that wave, but STEM has become\xa0a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium\xa0are implementing\xa0smart boards, apps, school fablabs etc.\xa0without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc.\xa0rely on technology to avoid changing their behavior. Ironic, because reality is the opposite.\nWe do new biology education and that is\xa0our trojan horse:\xa0we can hide a new method in the new technological content that we bring. This also means that these changes to the methods\xa0won't be too radical. What we do\xa0is accepted as a technological innovation, but hopefully the changes in method will\xa0add\xa0to the slow collective learning process on different methods.", u'entity_id': 15297, u'annotation_id': 7120, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'I may have a nihilistic view, but it seems to me that there is no conclusive evidence for any educational method to be inherently superior to others. The typical story is this: young, smart, charismatic teacher becomes dissatisfied with how things are done in schools. He or she proceeds to start a new school that immediately outperforms the average existing school on all relevant parameters.\xa0\nMaybe the methodology really did the trick. This, however, does not explain why\xa0all\xa0methodologies seem to work so well: Montessori, Steiner, Ecole 42, home schooling... So, here\'s another possibility: young, smart, charismatic people who care so much about teaching to leave a secure job to invent their own way of doing it are likely to be better than average\xa0teachers. They would do well with\xa0any\xa0methodology.\xa0\nThis would explain at least one case: that of the abandonment of the "notionist" paradigm in the West, supported by solid research results. Children schooled in the new way, more attentive to developing creativity and social skills, outperformed their traditionally schooled peers. But sure enough, 30 years later Western universities\xa0were flooded by graduates from very traditional Asian schools, and they kicked the Westerner\'s asses to kingdom come.\xa0\nIt does not make sense that creativity-oriented schooling is both superior\xa0and\xa0inferior to traditional cramming-oriented schooling. What\'s going on here could be\xa0regression to the mean. If you generalize any methodology to the mainstream\xa0you are going to get no more than average results, because this is what happens with average teachers teaching to average learners. I expect that the same will happen to generalized Arduinos in schools.', u'entity_id': 20565, u'annotation_id': 7121, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"I don't find what you say nihilist at all @Alberto , and I agree with your observations. Education is above all a human relationship, in fact a proxy of parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there's one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important,\xa0from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.", u'entity_id': 22212, u'annotation_id': 7122, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"Well, this is for sure. I guess our school system was designed\xa0in a context where socialization happened outside the school and peer structures were robust. And maybe they are not that robust anymore, and anyway teenagers have very little time. This, by the way, is danah boyd's take on teens and social media in It's complicated: families saturate teenagers time with what she calls adult-approved activities, and they escape into social media to Just Hang Out.", u'entity_id': 22646, u'annotation_id': 7123, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'I\u2019ve been granted research scholarships for the past years and I use them to bring change in two main areas of education: technologies and practices of innovation. It\u2019s about bringing these two aspects, also existing in collaborative economies, communities, in hacker groups and activists promoting open access to knowledge, data and technology to stubborn, hermetic ecosystems of higher education. \n\xa0\nMy current project, a weblab named Puntozero (http://puntozero.github.io/), explores the ways in which teachers, professors, tutors and students -used to the traditional model of lecturing a class and equipping people with theoretical knowledge and in-field training- might integrate in a community of practice to innovate the way of learning. This year there are about 150 students involved. The brainstorming about proposals include more talking to the patients, who want to collaborate and surely want to see medicine more friendly, more efficient, more human. It is important to change the way we see health care - not as a prestigious, restricted profession for a selected group of professional, but as a practice that has been there for thousands of years, a huge amount of collective wisdom that pioneered and support what we call medicine and care right now. \n\xa0\nIt\u2019s fascinating to play with the idea of a healthcare student classroom where, instead of feeding people with theories, teachers would create space where students meet makers of all sorts and discuss various technological innovations with them, and spend time with their patients, getting hands on experience in various cases. By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals. Their work style would be more inclusive and horizontal, and they would be more interested in critical thinking and discussion, sharing and transparency. \n\xa0\nAt the moment I\u2019m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students. \n\xa0\nAnother one is to replace yearly reports from traineeship by an online book, accessible to everyone and encouraging discussion. And it actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they\u2019re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education. \n\xa0\nI\u2019m interested in joining the OPENandchange with the mission of tweaking and/or revolutionizing the classroom and the health care education and training. I want to create more opportunities for students to meet people who change the way care is given in different ways - by making devices, by creating informal institutions, in fablabs and elderly houses. I want to prepare workshops where makers and patients would be working along the health care providers on new solutions. And I want to empower alternative ways of giving care, outside of the formal profession, initiatives driven by values other than money - by the idea of being helpful, virtue of serving each other, and actual engagement. \n\xa0\nTherefore i would like to engage other scholars, makers, educators, archivists, patients and who else inspired by an open paradigm of healthcare in contributing to a p2p learning project to advance healthcare professions curricula and innovate where possibile and to open knowledge filed the higher education for healthcare professions. Please add your comment to participate.', u'entity_id': 524, u'annotation_id': 7124, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'year).\nWhile seems easier to involve patients, patrons and makers in open discussion about innovation and shared practices, the world of education and professionals themselves should undergo a rethinking towards wide collaboration and practicing in communities in the fast changing, seamless and heterogenous world we all live in.', u'entity_id': 14715, u'annotation_id': 7125, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'I got excited reading your piece @Federico Monaco!\xa0Your approach to learning\xa0and willingness to experiment is exactly what the educational system needs right now. This sums it up quite well for me: "By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals.".\xa0@trythis has some interesting\xa0points of inspiration as well...\nAre there any particular sources of inspiration you use to come up with new ways of teaching? Have your experiments\xa0ever backfired?', u'entity_id': 23739, u'annotation_id': 7126, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'The \u2018Big Bang Schools\u2019 is a new educational approach and a new type of schools that are re-designed for an era of exponential technological advance and social change. The project seeks to create innovation labs for real human challenges and the planet, helping shape the future instead of repeating the past. It is considered as a catalyst for a new civilization paradigm of joining forces towards \u201cupgrading humanity\u201d.\nWe used the name \u2018Big Bang\u2019 in a symbolic way to highlight the explosion of new ideas and the creation of brand new knowledge from scratch. A new Big Bang of Creation is about to start at Thessaloniki in the following 2 years (2018) hoping that the idea will expand to other Greek cities and abroad. A school where learning is accomplished experientially, in harmony and interaction with the natural environment, aiming to lead children on a wonderful quest.\nCentral in our philosophy is that educational activities must take place within the natural environment and the whole procedure must be supported through workshops where pupils have the opportunity to discover and connect with new information. Our educational approach encourages the development of capacities through observation, flexibility, adaptability, evaluation, goal setting and self-confidence in order to create their own path of life.\nThe Big Bang Schools are furthering the vision of our initial project, the \u201cSchool of Nature and Colours\u201d. This is an educational role model of creative self-management, in which pupils are taught beyond the curriculum how to learn in-depth, sing, dance, stage theatrical plays, raise funds for their school through a vegetable garden and make their activities and campaigns are known to the public using social media.\nIn this framework, we organize a unique Creative Centre for our children which we called BIG BANG after SCHOOL\u2019. This is a comprehensive program for elementary school children and kindergarten, where all participants are able to connect with music, cinema, dance, theater, arts as well as workshops in creative thinking, constructions, architecture and engineering. Additionally, we created a specific program for elementary courses such as science, history, philosophy and multilingualism. In this project, everyone is welcome to contribute in different ways besides financial support. This is a project designed to benefit children and parents who seek for alternative educational methods of learning and interacting with people and the natural environment.\nMy name is Angelos Patsias, an educator on my 30s who aims to launch various innovative activities that will help create a new educational system that will meet the specific needs of each and every place. I started my studies in Primary Level Education at the Democritus University of Thrace and I am currently reading issues for an MA candidate at the Faculty of Sociology at the University of Crete. My philosophy of life encourages me to encounter every difficult circumstance as an opportunity, and at the same time, I strongly believe that returning to the simple meaning of life is an essential action.\nMy partner, Veta Georgiadou has been a kindergarten teacher in public schools for 22 years. Our collaboration in \u201cBig Bang Schools\u2019 project started when she watched my TEDx speech about \u2018Breaking the walls between school and society\u2019. As she usually says: \u2018Children are the best tutors because they believe in miracles, the life at a present time, are full of enthusiasm and are creating all the time\u2019. She studied pedagogics, eventually becoming a wife and mother of three children and her constant self-searching voyage with pupils, parents, teachers, who never stop learning and reforming is still ongoing.\nThe third partner, Yiannis Sotirakos, is a serial entrepreneur developing projects and technologies towards \u201cUpgrading Humanity\u201d, and innovative educational and edutainment platforms to empower the youth.', u'entity_id': 761, u'annotation_id': 7127, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 16092, u'annotation_id': 7128, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Your students are not yours.\nTo create a community we realized \xa0real life meetings between teachers and schoolmakers. Every school has the possibility to post directly activities, news. So everyone can have an always updated map of time classes, levels, locations etc; But also a moment of exchange between teachers, methods and materials. The teachers all together wrote also an handbook for teachers (in Italian only). We also created an e-learning database to help people to find free resources on internet and a lot of videos (in 5 languages) to explain Laws. Education system...', u'entity_id': 515, u'annotation_id': 7129, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"@Scigrades also opened a call for input to make infographics around insulin/diabetes, to help with education and communication. It would be great to hear your input how he could shape these so that they may be relevant to re use in your context as well.\nPersonally, I'm\xa0very interested in learning about the topics you will study as a 'researcher'. How will you be conducting this research?", u'entity_id': 33787, u'annotation_id': 7130, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"Wow @WinniePoncelet @NiekD . Unforunately I do not have a name of the Belgian researcher but I have been working on very similar themes in Cape Town when employed by a local org\xa0. I focused very much on the Health Impact pillar of the organization, which adopted a participatory approach in its educational programmes. I managed 2 projects for the org that focused on Community Care Workers who were primarly the ground fighters for TB and HIV. We used Digital Story telling, Theatre and Photovoice as methods for engagement which were very successful in relaying lived experience for the sake of education. I'd be happy to share key learning. This video provides feedback from Community Care Works, and their reflections on the project:\xa0https://vimeo.com/180156715 \xa0and this video features one Digital Story from a community resident:\xa0https://www.youtube.com/watch?v=dy1PHfUMCQY.", u'entity_id': 33803, u'annotation_id': 7131, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'I agree that visual approaches bridge educational divides and somewhat diffuses jargon. This has assisted me in relaying scientific knowledge to other audiences. I\'ve been actively involved in collaboratively designing Events to this purpose, which not only provides knowledge in "digestable" means to community members, but are key for Scientists to observe as well. Each event has been learning for me, and I\'m now testing the efficacy of presenting data in a different manner in communities, i.e. arts, or fun interactive events within communities in a pop-up fashion.', u'entity_id': 33824, u'annotation_id': 7132, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"I would like to make a comment to your idea and pssdgroup5\xa0I must say that it is a brilliant topic and also a\xa0very huge space to contribute and envelope students and helping them on their way forward.\n\nI can value this very good, because my country Kosovo ( FYR Of Yugoslavien ) is the only state in the Europe Union which citizens are forbiden to travel abroad Kosovo,although we have family members and friends in every country in Europe we are not allowed to travel in Schengen Zone without a special permission which is permitted to only 10% of the popullation. The youth and the students are suffering from this, making them unable po expand their knowledge and reach higher level of education, we are censured to one of the human rights, free movement of the popullation.\n\nThere are several student exchange programs with the United States and the EU which would be very helpfull to start sharing and collecting new connections and educations. I have needed such a exchanging programm as a student, eventhough i didn't make it to be a part of an exchange program as a participiant.\n\nThumbs Up and wish you all the best...", u'entity_id': 7661, u'annotation_id': 7133, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"a documentary video documents the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on the project's website (http://www.bagmatiriverartproject.com/videos/bagmati/).\n  a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We have worked with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design. We will be collaborating with the students at SUNY Fredonia to finish the design of the brochure and poster.", u'entity_id': 576, u'annotation_id': 7134, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'They are both asking me for help in finding\xa0a job at universities or doing a (another) PHD in Europe.\nHis uncle, so he does not have to return to Iraq after his PHD finnishes in Leicester. His mother, to feel use full while waiting to go back to her country one day.\n\nSo her my question: Where, how and what can they do to have the best results in their search for a university job or sudy? As I never did a PHD or worked at universities it is still a blank canvas for me.\nThanks for taking the time for providing me with tips and tricks.\nMaria', u'entity_id': 831, u'annotation_id': 7135, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?\xa0 Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).\xa0\nOur schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it\u2019s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical.\nThe language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don\u2019t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.\xa0\nMontessori\u2019s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group.\nDuring these years we\u2019ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:\xa0\n\nThe discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize \u201cThe ground language\u201d (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.\xa0\nThe comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named \u201cRoots and Branches\u201d (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.\xa0\nDue to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group.\nThe importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.\xa0\n\nFrom 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.\xa0\nOur goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.\nThe \u201cCascina\u201d will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.', u'entity_id': 828, u'annotation_id': 7136, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Je pense ne pas \xeatre le seul, en disant qu\u2019une fois tous les x-temps dans le milieu socioculturel, \xe9v\xe9nementiel ou de l\u2019entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon \xe9nergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n\u2019arr\xeate pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c\u2019est moi ? Une logique peu constructive mais tellement facile qu\u2019elle nous \xe9loigne du vrai probl\xe8me : pourquoi n\u2019apprenons nous pas la culture de la collaboration \xe0 partir du plus jeune \xe2ge ?\nNous l\u2019entendons partout : nous sommes dans une p\xe9riode transitionnelle, qu\u2019elle soit positive (\xe9mergence d\u2019\xe9conomie collaborative, renouveau des mod\xe8les low-tech, cr\xe9ation d\u2019outils num\xe9riques de gestion d\xe9centralis\xe9e, \u2026) ou n\xe9gative (\xe9mergence d\u2019organisations extr\xe9mistes, renouveau des partis populiste-fasciste, cr\xe9ation de tactiques num\xe9rique de propagande,\u2026) nous voyons que l\u2019importance de se retrouver sous un arbre de valeur est d\u2019une grande importance en ce moment. Les outils sont l\xe9gions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration d\xe9centralis\xe9s : Github. Tous ont une arm\xe9e de fans, mais tous ont le m\xeame probl\xe8me : si il n\u2019y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau d\xe9cor. C\u2019est comme donner des outils de permaculture \xe0 un fermier industriel : si il ne voit pas que les valeurs partag\xe9es sont un atout majeur, il restera avec ces m\xe9thodes classiques.\nLa Culture de la collaboration\nComme n\u2019importe quelle autre id\xe9e soci\xe9tale, elle devient omnipr\xe9sente quand elle est vue comme une partie de notre \u2018culture\u2019. Mais aucune id\xe9e n\u2019a fait partie de la soci\xe9t\xe9 sans avoir \xe9t\xe9 confectionn\xe9e d\u2019une mani\xe8re ou d\u2019autre. Un premier pas pour aller vers cette \u2018Culture de la collaboration\u2019 est de voir l\u2019information comme un bateau qui doit arriver \xe0 bon port. Ca ne sert \xe0 rien de tenir l\u2019information pour soi, partage la avec la bonne personne, passe les bonnes id\xe9es comme si c\u2019\xe9tait un plateau de charcuterie \xe0 une soir\xe9e raclette. Chaque personne prendra bien soin de choisir l\u2019info qui lui convient le plus.\nCar une information qui v\xe9hicule librement aide \xe0 am\xe9liorer le deuxi\xe8me point : Ne perdez plus d\u2019\xe9nergie \xe0 r\xe9inventer la roue mais essayer de contribuer avec des projets d\xe9j\xe0 existant. C\u2019est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d\u2019autres informations qu\u2019on apprend beaucoup. Rester dans son enclos n\u2019aide personne, m\xeame si le r\xe9flexe protectionniste se comprend : vous voulez contr\xf4ler votre id\xe9e contre un opportunisme qui pourrait se cacher derri\xe8re chaque recoin. Mais si nous acceptions, comme c\u2019est d\xe9j\xe0 le cas dans les recherches universitaires, d\u2019avoir un syst\xe8me de mentions g\xe9n\xe9rales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme.\nRecr\xe9er la membrane de confiance\nCar voil\xe0, le grand probl\xe8me qui se cache derri\xe8re cette peur inn\xe9cessaire de la protection d\u2019information: on \xe0 perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se m\xe9fier de l\u2019autre. Car comme disait ce bon vieux Sartre: L\u2019enfer c\u2019est les autres. Mais si nous relisons la th\xe9orie du Darwinisme social nous voyons que c\u2019est notre aptitude \xe0 collaborer qui \xe0 fait que nous avons surv\xe9cu aux animaux dix fois plus grand que nous, aux p\xe9riodes glaciaire et aux famines.\nPour recr\xe9er cette membrane de confiance nous ne devons pas croire dans \u2018les grand mouvements\u2019, car comme les grandes histoires, elles sont mortes avant d\u2019entrer dans la p\xe9riode post Moderne. Soyons comme Enspiral, un r\xe9seaux de petit groupes. Cr\xe9ons des petits faits, pour r\xe9apprendre \xe0 se faire confiance. On ne doit pas d\xe9crocher la lune, mais simplement savoir aider son voisin. La petite pierre que j\u2019apporte \xe0 cet \xe9difice est de prendre le caf\xe9 chaque matin avec quelqu\u2019un d\u2019autre, d\u2019\xe9couter son histoire et de voir ou je peut faire du lien.\nL\u2019ego doit donner place \xe0 l\u2019id\xe9e\nDans notre soci\xe9t\xe9 contemporaine nous donnons encore et toujours trop de place \xe0 l\u2019ego, qui l\u2019emporte souvent en discussion de l\u2019id\xe9e. Mais voil\xe0 si nous voulons vraiment cr\xe9er une culture de la collaboration nous devons mettre en place des freins \xe0 l\u2019ego. De pouvoir \xeatre fier de l\u2019ajout qu\u2019on a donn\xe9 \xe0 une id\xe9e. Ne plus voir la collaboration comme une simple \xe9conomie du (mauvais) couple, ou chacun donne et qu\u2019on fait les comptes quand \xe7a ne va pas, mais se focaliser sur l\u2019id\xe9e et les valeurs v\xe9hicul\xe9es en commun.\nPour \xe7a la collaboration doit se faire par les faits et non par les mots. Trop souvent la r\xe9union pr\xe9c\xe8de la participation, mais c\u2019est en faisant qu\u2019on apprend plus de la personne, que chaque personne est mise \xe0 nue. Une expression invent\xe9e par Nicolas de OpenFab trouve ici parfait \xe9cho: nous devons cr\xe9er l\u2019atome de FAIRE.\nUn prochain pas pourrait \xeatre de redonner dans notre \xe9ducation collective une vraie place \xe0 la collaboration. Pas de travail- en groupe forc\xe9 qui mal organis\xe9 nous prouve que l\u2019enfer c\u2019est vraiment les autres, mais une culture de la collaboration ancr\xe9 dans le syst\xe8me d\u2019\xe9ducation g\xe9n\xe9ral.\nSi vous avez des ressources la-dessus je suis preneur.\nHoward Rheingold | Who Said Collaboration Wasn\u2019t Sustainable\nJason Louv |The Next Buddha Will Be a Collective\nDaniel Christian Wahl | Collaboration and empathy as evolutionary success stories\nEnspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals', u'entity_id': 33747, u'annotation_id': 7137, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 7138, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'I suspect that we should understand these two projects as running in parallel, rather than collaboratively. MakEY (the project we\'re a partner in) is 100% focused on early years kids, devising workshops to help teachers gain confidence and skills to lead higher value making sessions for 5-8 year-olds, hopefully enthusing them with STEM. We\'re looking to have fun with robots, drawing, moulding things, playing with conductive materials and electricity; then we aim to develop best practices which we can disseminate to other school environments. A further objective may be to understand what kind of "makerspace" could be accommodated inside a school. As you\'ll no doubt be aware, there\'s an EU-wide problem with retaining young people in STEM learning, and this will put us in a poor position to compete globally, and make best use of the new transformations in manufacture.', u'entity_id': 19837, u'annotation_id': 7139, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 7140, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"@Noemi @alberto you might be interested in the work done by Eugenio Battaglia to bring low-cost biohacking-lab in every school, we tried to propose it to the Ministery of Education.\xa0\nHere you find part of the documents\xa0https://drive.google.com/file/d/0B3a6iTS9jqfCY242M0g2VUp4QUU/view?usp=sharing (if you want I can share the rest)\xa0\n\nIn general, I think biohacking have an enormous potential, for educational purpose, it's already very valid.", u'entity_id': 18966, u'annotation_id': 7141, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"Super interesting Damiano. We wrote a proposal for the same thing in December: install a DIYbio lab in a high school. We had a nice consortium of partners, but sadly it did not go through. I'd be very interested in reading the rest of the documents.", u'entity_id': 18972, u'annotation_id': 7142, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"I thought I'd write a small update. In September 2016, we have launched a new nonprofit for education called Ekoli. Reasons for putting our educational activities in a new entity were better communication and keeping the biohacking legally seperate (translates into admin & cost advantages).\nIn retrospect, it was also good to assemble a new team around a new common goal. This fresh wind pushed us to where we are now, having reached hundreds of underpriviledged children & school children and poised to grow a lot in the new school year after the summer.\xa0\nDownsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent) \xa0time too thinly. Generally it was a good decision though.", u'entity_id': 24301, u'annotation_id': 7143, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices \xa0and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing \xa0plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that \xa0expose girls and women to violence \xa0and \xa0HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com\nI will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.", u'entity_id': 24949, u'annotation_id': 7144, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Hi @Gentlewest I have long thought about a concept for more effective teaching with the help of cheap (repairable) mp3 players and small printed cards for illustrations. The original idea behind this is to reach really rural and remote people and provide them with good access to useful information. But to start this I was thinking about which lectures make most sense - and I think you have a very good example of one (I also agree with @saeed.qaisrani ). So I think the wider topic of hygiene & health would be most helpful.', u'entity_id': 26068, u'annotation_id': 7145, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made \xa0exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.\xa0\nI will love to work out something with you. Lets connect. get in touch at : (+237) 670708533\n:Looking forward to read from you soon.', u'entity_id': 27830, u'annotation_id': 7146, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"Winnie was telling me that this is\xa0accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:\n\n\xa0you can demonstrate diy science and how it contributes to increasing health awareness and care\n\xa0you demonstrate its openness, how communities take it on board and learn, then teach others etc.", u'entity_id': 17617, u'annotation_id': 7147, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'What do you think about\xa0interactive workshops, psychologists, educators and sociologists playing with children so they can\xa0 adopt essential ideas that no one should mistreat them, that they should report any form of violence, when they grow up won`t allowe\xa0bad behavior in the name of\xa0love, oppression or degrading treatment from society or be abuse and suffer because they are poor?', u'entity_id': 16621, u'annotation_id': 7148, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Getting these important subjects onto school curriculums would be a very good outcome. I created an app in 2001 "Seeing Sense" that became part of the curriculum in the schools in Northern Ireland, when working with Mark Willett Design Associates. It was a usefull educational tool, but education is just a part of the solution.', u'entity_id': 20403, u'annotation_id': 7149, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u"To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care.", u'entity_id': 858, u'annotation_id': 7150, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"Abortions\xa0are legal, but there is still a condemnation of women who decide to have an abortion, by doctors, partner, society, which is totally stupid woman's right is to do with her body what she consider is the best.\nVery little is done on education, large number of abortions, legal and illegal, women should be informed that this is not a form of contraception, and that repeated\xa0abortions are harmful to health, the number of adolescent pregnancies is rising.\xa0Awareness and\xa0availability of contraceptives, pills for the day after and abortion with medication, are crucial.", u'entity_id': 11895, u'annotation_id': 7151, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'A liquid and seamless leadership making possible such performance made up of details and roles taken time by time by the many here around. There are skills, shifts and duties that can be interchanged; other are very specific and will need a bit of training, or briefing.', u'entity_id': 852, u'annotation_id': 7152, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u'Hi @Noemi!\nThe kick off event had a good start. During the\xa0first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind).\nThanks for the support!', u'entity_id': 14118, u'annotation_id': 7153, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 7154, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"Find good quality online educational material that offers an introduction to\xa0synthetic biology, molecular biology, protein engineering, genetics and other relevant fields. Add it to the 'Technology Basics' section with a short description containing what's it about and why people should use it.\nHelp in organising information. Are you a pro in organising scientific articles and data? Great, we can use help with that! Get in touch with @WinniePoncelet .\nAdd Frequently Asked Questions. Have you been asked about the project? Put the question and your answer in the FAQ!", u'entity_id': 6412, u'annotation_id': 7155, u'tag_id': 2542, u'entity_type': u'post'}, {u'quote': u"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.\xa0\n\nI think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these", u'entity_id': 19695, u'annotation_id': 7156, u'tag_id': 2542, u'entity_type': u'comment'}, {u'quote': u'The social contract underpinning participation is often not clear. I participate, then what? What we suggest gets implemented? What we suggest gets considered? How do I know decisions have not been made beforehands, and the decision maker ris just looking for a rubberstamp? Recent example: after an online and offline consultation with 1.8\xa0million\xa0participants on Italian schools, number 1 request that emerged was to have teachers evaluated by independent experts, and not by their own headmasters. The government, nevertheless, decided to reject that request. Assuming the average participants spent two hours participating (very conservative assumption), that means the waste of 3.6 million hours. In European standards (1,732 productive hours in a year), that the equivalent of about\xa02,000 years of human work. Not cool. The social contract issue is the easiest one to fix.', u'entity_id': 30886, u'annotation_id': 7161, u'tag_id': 767, u'entity_type': u'comment'}, {u'quote': u'This is ust my own personal \xa0take, mind you. But me, I am too much of an economist not to see the efficiency gains of involving everyone, being super-flexible as to the form in which different people contribute. The Reef has a calming, burnout-preventing\xa0effect on us simply because being in one live-work place allows us to support each other in more ways. If I am exhausted, or pissed off, I can share whatever I do to flush the ad stuff out of my system: if I feel like cooking a meal I can offer you to cook for you too (or help me, if you feel like cooking too). If I feel lik going for \xa0run or a long walk I can invite you. It costs exactly nothing. But occasionally it will be just what you need: taking a break, regenerating a bit. We have already noticed how we are working fewer hours, and cutting out exactly the worktime where we are most stressed or tired \u2013 the worktime that does not produce anything. Compare the economics of this with those of bringing in a top-heavy professional system of counseling and treatment.', u'entity_id': 24900, u'annotation_id': 7163, u'tag_id': 768, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 7162, u'tag_id': 768, u'entity_type': u'comment'}, {u'quote': u'I am quite passionate about the idea of electronic democracy (well, actually I know more about electronically facilitated\xa0government,\xa0or even governance). I personally ran some government projects that used social software, and even wrote a book about this stuff. In fact, Edgeryders itself was born as one of those projects!', u'entity_id': 14196, u'annotation_id': 7062, u'tag_id': 750, u'entity_type': u'comment'}, {u'quote': u'Egyptian creative Youth', u'entity_id': 35613, u'annotation_id': 12206, u'tag_id': 2443, u'entity_type': u'post'}, {u'quote': u'ur 18 guests from 13 European Cities were very interested and reacted with their own examples and some questions.\n\nThe representative of City of Porto for example, mentioned their project called \u201cBridge to the Future\u201d. They brought together elderly people, students, companies to discuss, understand and think solutions for elderly people problems. The best outcome would eventually be tested in a Shark-Tank like arena of investors, to pitch their core ideas. People asked if OpenCare has provided a budget also for prototyping. The EdgeRyders platforms rose interest in participants. Guests from France and Holland questioned if the platform was inclusive enough, given than it takes a degree of internet literacy to use it. Polish guests asked if, using English as a common language wasn\u2019t limiting. @Rossana_Torri and @Costantino provided answers and stimulated the discussions. The morning ended with a recap session where participants have been asked to provide a SWOT analysis of OpenCare. Results will be presented tomorrow in the morning session.', u'entity_id': 24477, u'annotation_id': 12572, u'tag_id': 2040, u'entity_type': u'comment'}, {u'quote': u'Thank you @Maria! I see a great divide starting at the public level - not just elderly as being category in need, but also\xa0usual special considerations\xa0for them seeing pushback by\xa0other people, younger people. For example taking public transportation\xa0at rush hours. Imagine crowded places, everyone wants to get somewhere and people getting territorial - the first to get on the bus, to punch their ticket, to\xa0find a spot to sit down etc, but younger people frustrated that not everyone needs to get somewhere. The discourse I hear in my hometown "but why, older, health sensitive, and complaining as they usually do, why do they take the bus on the worst hour? Can\'t they wait for a 9 or 10 AM?"\xa0\xa0You may think this is a very provincial fight, but so telling to me!\xa0\xa0\n\nI believe this is a divide which in essence is heavily induced by the very policy discourse - in my country it\'s always been the fight between the leftist\xa0pensioneers favouring party versus the more liberal ones, and elections reflect just that.\n\nI\'ve yet to see in my immediate surroundings good projects catering to this gap..\n\nA similar\xa0point was made by @Alex_Levene here,\xa0talking about the ideological conflict we may end up having with\xa0our very own grandparents whose worldviews are frustratingly (and perhaps understandably)\xa0last century.', u'entity_id': 26962, u'annotation_id': 12571, u'tag_id': 2040, u'entity_type': u'comment'}, {u'quote': u'There\'s been a lot of mention of finding new ways of addressing the issues with caring for the elderly in recent weeks, especially with the problems of capacity in A&E and more general hospital wards due to the lack of the necessary social care. Heard of a scheme in Wakefield the other day, where triage is used between various branches of care (hospital, local GP / nurses, local or community facilities such as care homes) which was proving very effective at managing need and ensuring "efficient" (for want of a better word) addressing of peoples\' needs. (Some volunteer services, such as Help the Aged and the like were involved to help with transport and checking on a patient when they were ready to go home, rather than them waiting for ambulance services and staff from\xa0social care services to check on their immediate needs once back - but this did seem better than the individual concerned waiting unnecessarily in hospital, at huge cost.)', u'entity_id': 31537, u'annotation_id': 7176, u'tag_id': 2040, u'entity_type': u'comment'}, {u'quote': u'For my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together.', u'entity_id': 783, u'annotation_id': 7175, u'tag_id': 2040, u'entity_type': u'post'}, {u'quote': u'What if we could create a network of independent, highly connected, care homes? They would be innovative, fairly priced and an integral part of their local community. They would be great places to work, and run for the benefit of all, not to maximize profit or subject to the whims of governments. That\u2019s our dream.\xa0\nA bit of background: The care industry in the UK is in crisis (the BBC recently called it the problem no one can fix). \xa0It is a familiar story.\xa0 The demand for care is growing rapidly due mainly to an ageing population, with increasingly complex conditions, a breaking down of traditional community-provided care, and higher expectations amongst the elderly.\nAt the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population\u2019s increasingly complex care needs.\nAt the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the "growth opportunities\u201d. \xa0The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff.\nCaring for Life is a diverse team has come together to seek a better solution. We are inspired by:\n\nopen source communities, that harness collective intelligence to find new solutions to old problems;\nnetworked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large.\ntraditional community-based approaches to care-giving that are human-centred and sustainable.\n\nWe intend to will achieve this in particular by taking over existing care home businesses and creating, one-by-one, a network of homes modelling the type of care we want to see. \xa0Once we have established a small number of our own homes, we will reach out to other like-minded operators to create a broader community of homes around the UK.\nA key operating principle will be to involve all "stakeholders".\xa0 Buurtzorg (mentioned above) has an excellent model, illustrating the various levels of involvement, and whilst this is primarily looking at home care as opposed to care homes, it is a useful way of viewing the bigger picture.\nCare home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person\'s "support system". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected.\nLegal structure:\xa0 Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home. \xa0There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitability.\nGetting started:\xa0 Our intent is to start by acquiring control of one care home.\xa0 In order to keep capital needs as low as possible in the early stages, the intention is to lease premises on a long-term lease rather than buying a home. An opportunity has been identified near the south coast of England and conversations have started with the owners.\xa0 This is an interesting opportunity, in particular because there is an chance to acquire the property and business for a low price.\xa0 The home is currently subject to "special measures\u201d, imposed by the Care Quality Commission.', u'entity_id': 758, u'annotation_id': 7174, u'tag_id': 2040, u'entity_type': u'post'}, {u'quote': u"There are a number of\xa0interesting intergenerational care projects internationally - including:\xa0Present Perfect - USA & Fureai Kippu - Japan.\nThe Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.\xa0\nI understand there's an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.", u'entity_id': 20476, u'annotation_id': 7173, u'tag_id': 2040, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 789, u'annotation_id': 7172, u'tag_id': 2040, u'entity_type': u'post'}, {u'quote': u"I do think that there are some positive ideas coming through around intergenerational living though. It's not that i'm intrinsically against 'old people', i think the irony is that i'm not especially fond of MY 'old people'. I would be more than willing to help look after a number of more liberally minded old people. It comes down the idea first put forward in the Open&Change discussion in HuisVDH", u'entity_id': 27819, u'annotation_id': 7170, u'tag_id': 2040, u'entity_type': u'comment'}, {u'quote': u"In the USA, the fabled land of plenty where you are free to succeed and also free to fail, statistics show that the average life savings of my generation are barely enough to sustain them (us) for a year in anything like the standard of living now enjoyed. \xa0And that stadard is lower already than our parents' WWII generation that was both smaller and wealthier, with a vastly larger middle class. \xa0Then\xa0what will become of everyone? American Social Security is robust now but without a lot more\xa0care and feeding from a unified nation,\xa0it won't stay that way. \xa0And the cost of urban living is going up fast all over America. \xa0Sending seniors out to the country where the health care is worse and one has to drive everywhere isn't an answer.\xa0At least seniors in the USA have Medicare, but that alone won't cover the total cost of health care.", u'entity_id': 23372, u'annotation_id': 7169, u'tag_id': 2040, u'entity_type': u'comment'}, {u'quote': u'Speaking as an American at the\xa0age when living parents are all advanced seniors -\xa0and many of those seniors live in homes and facilities,\xa0while it can be said without danger of over-generalizing, that to many in my age group, having your late-age senior living with you is seen as an inconvenience.', u'entity_id': 21579, u'annotation_id': 7168, u'tag_id': 2040, u'entity_type': u'comment'}, {u'quote': u'For exemple the old people are separated from the rest of the adults, they don\u2019t have a connection. Why do you do that? We don\u2019t talk about generational society, we don\u2019t attach value to\xa0the older people\xa0here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity', u'entity_id': 790, u'annotation_id': 7167, u'tag_id': 2040, u'entity_type': u'post'}, {u'quote': u'\u2018But how could it directly be linked with care?\u2019, i asked her. She takes the example of elderly care, also discussed in the interview with Ginette where people even if they live in big houses don\u2019t have the time anymore to care for their elderly and put them into homes, from own experience we conclude that the home isn\u2019t the best designed space to give good care. Making effort to create a nice environment for the elder people could help them feel well longer. We know from studies that interaction is a key in stopping elderly dementia. So having public spaces designed around giving care and sharing part of your lives with unknown people could be a major incentive for our future problems with ageing population.', u'entity_id': 745, u'annotation_id': 7166, u'tag_id': 2040, u'entity_type': u'post'}, {u'quote': u"Hi again @Federico_Monaco, wow it struck me to see similarities in our approaches - the open approach to community learning in particular, and the focus on process. It seems you're more interested in teaching students collaborative practices than growing their knowledge of healthcare, which should follow naturally\xa0as an outcome (by the way do you measure that in any way?).\n\nI have looked for the community interactions but the only space I found was this one (empty?)\xa0https://puntozero.github.io/community.html Should I go somewhere else?\n\nOne last point for now, your timeline follows closely OpenCare as well. Is it possible for non-registered students to participate in the webinars? If so, we might consider partnering up - as many\xa0community\xa0members here speak Italian and could be interested to join.", u'entity_id': 8059, u'annotation_id': 12368, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29067, u'annotation_id': 12367, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u'our concept is really awesome and supercool.Using technology to reach out to the world with sustaibale E-health solutions in schools, hospitals and community events. With this great resource, i think quality information will be accessible for people and this will help save lives.. Good job, i am very impressed. Many of us will definitely love to collaborate with you to make the concept widely known especially in Africa. \xa0You could reach out to mbotiji@gmail.com. Thanks', u'entity_id': 27796, u'annotation_id': 7072, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u'Yes, there are some first outcomes:\na) the open infrastructure was presented at EMEMITALIA,\xa0 the national congress on e-Learning that in Modena on september 6th', u'entity_id': 27809, u'annotation_id': 7071, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u'actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they\u2019re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education.', u'entity_id': 524, u'annotation_id': 7070, u'tag_id': 751, u'entity_type': u'post'}, {u'quote': u"I'm seeking contributions, participants and co-organizers for a webinar at the end of the month about discussing on e-patients and online communities on healthcare issues and forms of activism, networking and engagement of patients, citizens, makers, etc.. in research and social shaping of medical and healthcare technology. Anyone interested is welcome in co-designing or sketching the best formula for such a live event!", u'entity_id': 21418, u'annotation_id': 7069, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u'Thank you for your comment @Noemi\nI\'m not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see..\nUnfortunately the\xa0 community interactions are the goal and not the mean. I\'m doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus.\nThe idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I\'d love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.\xa0 What about starting in June talking about "e-patients and EHMs"? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist.', u'entity_id': 11219, u'annotation_id': 7068, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u"The project includes a accessible site via the github pages and the social networks' groups and profiles; at the same time it supports activities, communication and resources for about 150 students of 5 healthcare professions Masters on 5 e-Learning communities of the University of Parma, in Italy. The MOODLE environment used by students and tutors is shared open source and downloadable from here.\nFree to comment, join and collaborate with us!", u'entity_id': 686, u'annotation_id': 7067, u'tag_id': 751, u'entity_type': u'post'}, {u'quote': u"Welcome, @Shajara ! This school of yours\xa0sounds really advanced. One thing I don't understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?", u'entity_id': 14631, u'annotation_id': 7066, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u'All of this is facilitated by Minerva\u2019s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students. \xa0\nThis unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students\u2019 mental health and wellness! Minerva students\u2019 have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities.', u'entity_id': 724, u'annotation_id': 7065, u'tag_id': 751, u'entity_type': u'post'}, {u'quote': u'Get some fairly decent CAD skills without the cost. And share some of what you make with the rest of us. Onshape.com allows CAD straight from the browser (of a decent computer or notebook). Check out who is behind it, those are some of the CAD Urgestein folks, and everything is fully legit.', u'entity_id': 29543, u'annotation_id': 7064, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30316, u'annotation_id': 7063, u'tag_id': 751, u'entity_type': u'comment'}, {u'quote': u"Il tuo progetto in un tweet*\n\n\n\n\n\n\tDoc.doc \xe8 la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica pi\xf9 completa possibile.\n\n\n\tBisogno o problema che il tuo progetto cerca di risolvere*\xa0\n\n\n\n\n\n\nSempre di pi\xf9 patologie complesse necessitano della collaborazione tra molti specialisti della cura.\n\nA questi diversi professionisti manca per\xf2 la possibilit\xe0 di comunicare e condividere informazioni su una piattaforma dedicata.\n\nL\u2019attuale procedura di lavoro evidenzia i seguenti problemi:\n\n\nDelega al paziente la responsabilit\xe0 nel fornire le corrette informazione relative al proprio caso.\nRende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi.\nNon permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all\u2019incontro con lo stesso.\n\n\nDoc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura.\n\nInoltre la progettazione UX \xe8 stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un\u2019email.\n\n\n\n\n\tUtente finale, individui e/o comunit\xe0 di riferimento*\n\n\n\n\n\n\nIl prodotto \xe8 pensato per i medici, ma i maggiori benefici andranno ai pazienti.\n\nDoc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (pi\xf9 pianificazione, pi\xf9 chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando.\n\n\n\n\n\tSoluzione, breve descrizione del progetto*\n\n\n\n\n\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\nInoltre, in una fase successiva, sar\xe0 possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro\xa0categorizzazione per patologia.\n\n\n\n\n\tTecnologie utilizzate o che vorresti utilizzare*\n\n\n\n\n\n\nLo strumento che abbiamo progettato si esprimer\xe0 attraverso un\u2019applicazione mobile per ambienti Android e iOS, che verr\xe0 quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l\u2019utilizzo del software il pi\xf9 immediato possibile. E\u2019 comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform.\n\nIl servizio cloud potr\xe0 essere sviluppato in NodeJS, con basi dati MongoDB e MySQL.\n\n\n\n\n\tSito web (o social network)\n\n\n\n\n\n\nIn fase di pianificazione.\n\n\n\n\n\tLicenza, che pensi di utilizzare\n\n\n\n\n\n\nOpensource\n\n\n\n\n\tStato attuale del progetto*\n\n\n\n\n\n\nIl progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\n\n\n\n\n\tConsiderando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto.\n\n\n\n\n\n\n1.0 Scoperta\n\n1.1 Osservazione del contesto\n\nDoc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d\u2019occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti.\n\n1.2 Acquisizione di idee, spunti, intuizioni\n\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\n\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\n2.0 Definizione\n\n2.1 Analisi delle soluzioni\n\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\n\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\n\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\n\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\n\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\n\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\n\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n\n3.0 Sviluppo\n\n3.1 Progettazione e prova del prototipo\n\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\n\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\n\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\n\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\n\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n\n4.0 Rilascio\n\n4.1 Completamento del prodotto/servizio\n\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\n\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\n\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\n\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\n\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.", u'entity_id': 33729, u'annotation_id': 12573, u'tag_id': 2041, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 7177, u'tag_id': 2041, u'entity_type': u'post'}, {u'quote': u'These are two vital questions for me and why I\'m\xa0"Creating new realities". There\'s this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts\' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that\'s feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.', u'entity_id': 846, u'annotation_id': 7178, u'tag_id': 772, u'entity_type': u'post'}, {u'quote': u'Our project in a tweet\n \n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.', u'entity_id': 33817, u'annotation_id': 7180, u'tag_id': 773, u'entity_type': u'comment'}, {u'quote': u'I find that implementing our app and the concept in the ONG sector dedicated to emergency situations is not only interesting and suitable, but needed and helpful. Since the app was initially designed to ease and facilitate both doctor and the patient in the transitory situations I was considering to contact and involve a friend working in the immigration reception center in Ancona to have more insight, information and clarify any doubts. Let me know what are your thoughts on this', u'entity_id': 33789, u'annotation_id': 7179, u'tag_id': 773, u'entity_type': u'comment'}, {u'quote': u"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?", u'entity_id': 15649, u'annotation_id': 7191, u'tag_id': 775, u'entity_type': u'comment'}, {u'quote': u'That is in part why I looked at ways of short term organization and info dissemination. The other thing that would be helpful and perhaps realistic for some poeple at least is to try to be able to provide a useful service during such emergencies.', u'entity_id': 13506, u'annotation_id': 7190, u'tag_id': 775, u'entity_type': u'comment'}, {u'quote': u'For example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. "Where there is no Doctor", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term.', u'entity_id': 13504, u'annotation_id': 7189, u'tag_id': 775, u'entity_type': u'comment'}, {u'quote': u'"Communication with the population in Germany is currently not part of emergency response exercises. In the competent authorities, there are in most cases no crisis communication concepts. Communication on social media has so far only been inadequately addressed." (this comes from the radiation guys who are somewhat important historically).', u'entity_id': 13499, u'annotation_id': 7188, u'tag_id': 775, u'entity_type': u'comment'}, {u'quote': u'We should focus on organizing and training ourselves for cases of emergency. Based on the strength of these sharing communities, we should work, in innovative ways, which could bring people together around common concerns, recognize and increase their skills and knowledge and instill in them a belief that they can make a difference.', u'entity_id': 550, u'annotation_id': 7187, u'tag_id': 775, u'entity_type': u'post'}, {u'quote': u". But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could\xa0 make a general call and most of the NGO's worked separately. We 've tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.", u'entity_id': 17482, u'annotation_id': 7186, u'tag_id': 775, u'entity_type': u'comment'}, {u'quote': u'At the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I \'m trying to solve the problem with an idea called "smart boxes" (difficult to explain at the moment). I don\' t know if there\'s something out there that can help. This is why I\'m here...', u'entity_id': 17482, u'annotation_id': 7185, u'tag_id': 775, u'entity_type': u'comment'}, {u'quote': u'In August 2015, as the first large waves of refugees started landing on the Greek shores and stuck along the border of Idomeni, I started this initiative of collecting and filling backpacks with first need items for refugees. At first, this has started very modestly, with a few friends organizing clothing donations through the Facebook https://www.facebook.com/%CE%A3%CE%B1%CE%BA%CE%AF%CE%B4%CE%B9%CE%B1-%CE%A0%CF%81%CE%BF%CF%83%CF%86%CF%8D%CE%B3%CF%89%CE%BDBackpacks-for-the-RefugeesSolutions-for-Homeless-148172338861553/?ref=bookmarks . At the beginning, I wasn\u2019t expending such a big response to my call, but volunteers -known and unknown- started visiting my clothing shop in Thessaloniki, bringing clothes and helping out to fill in the backpacks.', u'entity_id': 737, u'annotation_id': 7184, u'tag_id': 775, u'entity_type': u'post'}, {u'quote': u'"This emergency response system was established in 2010 by Philippe Beaudette, the former director of community advocacy who recently left the Foundation to work at Reddit. On his LinkedIn profile, Beaudette notes that during his seven years overseeing the various Wikimedia communities, he and his team responded to almost 500 threats of suicide and other imminent harm to people and property. A recent report from the Foundation\u2019s talent and culture team noted that, in one quarter, they handled five suicide cases that were escalated through the emergency email address.', u'entity_id': 19249, u'annotation_id': 7183, u'tag_id': 775, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 7182, u'tag_id': 775, u'entity_type': u'post'}, {u'quote': u'c) least but not last, three trainees (all nurses) are collaborating online to create emojis on healthcare, diagnosis and surgery issues. More to come... Seen your interest it might be useful to share some thoughts and network a bit on such perspective together in a videoconference perhaps..', u'entity_id': 27809, u'annotation_id': 7195, u'tag_id': 776, u'entity_type': u'comment'}, {u'quote': u'At the moment I\u2019m working with a couple of small innovations that could lead to improved communication between health professionals and patients. One of them is about involving three trainees in archiving and developing a set of health-related caremojis, accessible in a open, less formal exchange, a tool improving communication and adoption of symbols to represent concepts of concern (e.g.: surgery tools, health conditions, symptoms, etc..). They will be soon ready to be used and evaluated by the students.', u'entity_id': 524, u'annotation_id': 7194, u'tag_id': 776, u'entity_type': u'post'}, {u'quote': u'I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.', u'entity_id': 548, u'annotation_id': 7193, u'tag_id': 776, u'entity_type': u'post'}, {u'quote': u'I am out of words to explain how amazing the idea is. Such creativeness! Each of the artwork is unique in their own way. Carrying hidden meanings and emotion. Treat to the eyes. Glad to know you came up with the idea. Wishing you good luck.', u'entity_id': 8438, u'annotation_id': 7196, u'tag_id': 777, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 7197, u'tag_id': 778, u'entity_type': u'post'}, {u'quote': u'Specific objectives of the course are: \uf0b7 Introduce holistic model of stress and raise understanding of stress causes, mechanisms and effects \uf0b7 Raise understanding of how stress impacts teaching ability \uf0b7 Provide the participants with practical tools for dealing with stress \uf0b7 Reduce the consequences of stress (such as poor health, absenteeism, lack of creativity, ineffective communication, inability to focus, more conflicts etc.) and develop healthy ways of dealing with everyday work demands \uf0b7 Prevent burn-out syndrome in educators \uf0b7 Enhance emotional self-awareness \uf0b7 Introduce practical tools for coping with difficult emotions \uf0b7 Improve the participants\u2019 emotional balance \uf0b7 Help the participants to identify their stress triggers and emotional triggers at work context and come up with new, more resourceful strategies \uf0b7 Enhance in the participants the ability to relax \uf0b7 Broaden the understanding of health', u'entity_id': 6293, u'annotation_id': 7200, u'tag_id': 779, u'entity_type': u'post'}, {u'quote': u'One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, "it\'s just a job" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.', u'entity_id': 21701, u'annotation_id': 7199, u'tag_id': 779, u'entity_type': u'comment'}, {u'quote': u'This doesn\'t have to be a \'full-blown\' mental illness, but any thing that has weighed on them emotionally.\xa0\n@Moushira suggested yesterday in our community call that engaging people to share their issues shouldn\'t be put under headers of "mental health" but under something more like "emotional health". Similarly, \xa0@Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness\xa0can contribute to lowering the threshold as mentioned above.\nGuys, next Monday we are hosting an online\xa0conversation about emotional care, feel free to join in at 4:30 PM.\nPS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.', u'entity_id': 12389, u'annotation_id': 7198, u'tag_id': 779, u'entity_type': u'comment'}, {u'quote': u"I read the enspiral post, it was interesting- \xa0thanks for sharing! You're right, it's not the tools but\xa0people. There's some valuable advice in there, maybe we can try some of them out here. But this term, emotional labour, it feels like", u'entity_id': 33793, u'annotation_id': 7202, u'tag_id': 780, u'entity_type': u'comment'}, {u'quote': u'Je pense ne pas \xeatre le seul, en disant qu\u2019une fois tous les x-temps dans le milieu socioculturel, \xe9v\xe9nementiel ou de l\u2019entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon \xe9nergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n\u2019arr\xeate pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c\u2019est moi ? Une logique peu constructive mais tellement facile qu\u2019elle nous \xe9loigne du vrai probl\xe8me : pourquoi n\u2019apprenons nous pas la culture de la collaboration \xe0 partir du plus jeune \xe2ge ?\nNous l\u2019entendons partout : nous sommes dans une p\xe9riode transitionnelle, qu\u2019elle soit positive (\xe9mergence d\u2019\xe9conomie collaborative, renouveau des mod\xe8les low-tech, cr\xe9ation d\u2019outils num\xe9riques de gestion d\xe9centralis\xe9e, \u2026) ou n\xe9gative (\xe9mergence d\u2019organisations extr\xe9mistes, renouveau des partis populiste-fasciste, cr\xe9ation de tactiques num\xe9rique de propagande,\u2026) nous voyons que l\u2019importance de se retrouver sous un arbre de valeur est d\u2019une grande importance en ce moment. Les outils sont l\xe9gions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration d\xe9centralis\xe9s : Github. Tous ont une arm\xe9e de fans, mais tous ont le m\xeame probl\xe8me : si il n\u2019y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau d\xe9cor. C\u2019est comme donner des outils de permaculture \xe0 un fermier industriel : si il ne voit pas que les valeurs partag\xe9es sont un atout majeur, il restera avec ces m\xe9thodes classiques.\nLa Culture de la collaboration\nComme n\u2019importe quelle autre id\xe9e soci\xe9tale, elle devient omnipr\xe9sente quand elle est vue comme une partie de notre \u2018culture\u2019. Mais aucune id\xe9e n\u2019a fait partie de la soci\xe9t\xe9 sans avoir \xe9t\xe9 confectionn\xe9e d\u2019une mani\xe8re ou d\u2019autre. Un premier pas pour aller vers cette \u2018Culture de la collaboration\u2019 est de voir l\u2019information comme un bateau qui doit arriver \xe0 bon port. Ca ne sert \xe0 rien de tenir l\u2019information pour soi, partage la avec la bonne personne, passe les bonnes id\xe9es comme si c\u2019\xe9tait un plateau de charcuterie \xe0 une soir\xe9e raclette. Chaque personne prendra bien soin de choisir l\u2019info qui lui convient le plus.\nCar une information qui v\xe9hicule librement aide \xe0 am\xe9liorer le deuxi\xe8me point : Ne perdez plus d\u2019\xe9nergie \xe0 r\xe9inventer la roue mais essayer de contribuer avec des projets d\xe9j\xe0 existant. C\u2019est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d\u2019autres informations qu\u2019on apprend beaucoup. Rester dans son enclos n\u2019aide personne, m\xeame si le r\xe9flexe protectionniste se comprend : vous voulez contr\xf4ler votre id\xe9e contre un opportunisme qui pourrait se cacher derri\xe8re chaque recoin. Mais si nous acceptions, comme c\u2019est d\xe9j\xe0 le cas dans les recherches universitaires, d\u2019avoir un syst\xe8me de mentions g\xe9n\xe9rales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme.\nRecr\xe9er la membrane de confiance\nCar voil\xe0, le grand probl\xe8me qui se cache derri\xe8re cette peur inn\xe9cessaire de la protection d\u2019information: on \xe0 perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se m\xe9fier de l\u2019autre. Car comme disait ce bon vieux Sartre: L\u2019enfer c\u2019est les autres. Mais si nous relisons la th\xe9orie du Darwinisme social nous voyons que c\u2019est notre aptitude \xe0 collaborer qui \xe0 fait que nous avons surv\xe9cu aux animaux dix fois plus grand que nous, aux p\xe9riodes glaciaire et aux famines.\nPour recr\xe9er cette membrane de confiance nous ne devons pas croire dans \u2018les grand mouvements\u2019, car comme les grandes histoires, elles sont mortes avant d\u2019entrer dans la p\xe9riode post Moderne. Soyons comme Enspiral, un r\xe9seaux de petit groupes. Cr\xe9ons des petits faits, pour r\xe9apprendre \xe0 se faire confiance. On ne doit pas d\xe9crocher la lune, mais simplement savoir aider son voisin. La petite pierre que j\u2019apporte \xe0 cet \xe9difice est de prendre le caf\xe9 chaque matin avec quelqu\u2019un d\u2019autre, d\u2019\xe9couter son histoire et de voir ou je peut faire du lien.\nL\u2019ego doit donner place \xe0 l\u2019id\xe9e\nDans notre soci\xe9t\xe9 contemporaine nous donnons encore et toujours trop de place \xe0 l\u2019ego, qui l\u2019emporte souvent en discussion de l\u2019id\xe9e. Mais voil\xe0 si nous voulons vraiment cr\xe9er une culture de la collaboration nous devons mettre en place des freins \xe0 l\u2019ego. De pouvoir \xeatre fier de l\u2019ajout qu\u2019on a donn\xe9 \xe0 une id\xe9e. Ne plus voir la collaboration comme une simple \xe9conomie du (mauvais) couple, ou chacun donne et qu\u2019on fait les comptes quand \xe7a ne va pas, mais se focaliser sur l\u2019id\xe9e et les valeurs v\xe9hicul\xe9es en commun.\nPour \xe7a la collaboration doit se faire par les faits et non par les mots. Trop souvent la r\xe9union pr\xe9c\xe8de la participation, mais c\u2019est en faisant qu\u2019on apprend plus de la personne, que chaque personne est mise \xe0 nue. Une expression invent\xe9e par Nicolas de OpenFab trouve ici parfait \xe9cho: nous devons cr\xe9er l\u2019atome de FAIRE.\nUn prochain pas pourrait \xeatre de redonner dans notre \xe9ducation collective une vraie place \xe0 la collaboration. Pas de travail- en groupe forc\xe9 qui mal organis\xe9 nous prouve que l\u2019enfer c\u2019est vraiment les autres, mais une culture de la collaboration ancr\xe9 dans le syst\xe8me d\u2019\xe9ducation g\xe9n\xe9ral.\nSi vous avez des ressources la-dessus je suis preneur.\nHoward Rheingold | Who Said Collaboration Wasn\u2019t Sustainable\nJason Louv |The Next Buddha Will Be a Collective\nDaniel Christian Wahl | Collaboration and empathy as evolutionary success stories\nEnspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals', u'entity_id': 33747, u'annotation_id': 7201, u'tag_id': 780, u'entity_type': u'post'}, {u'quote': u'Je pense ne pas \xeatre le seul, en disant qu\u2019une fois tous les x-temps dans le milieu socioculturel, \xe9v\xe9nementiel ou de l\u2019entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon \xe9nergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n\u2019arr\xeate pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c\u2019est moi ? Une logique peu constructive mais tellement facile qu\u2019elle nous \xe9loigne du vrai probl\xe8me : pourquoi n\u2019apprenons nous pas la culture de la collaboration \xe0 partir du plus jeune \xe2ge ?\nNous l\u2019entendons partout : nous sommes dans une p\xe9riode transitionnelle, qu\u2019elle soit positive (\xe9mergence d\u2019\xe9conomie collaborative, renouveau des mod\xe8les low-tech, cr\xe9ation d\u2019outils num\xe9riques de gestion d\xe9centralis\xe9e, \u2026) ou n\xe9gative (\xe9mergence d\u2019organisations extr\xe9mistes, renouveau des partis populiste-fasciste, cr\xe9ation de tactiques num\xe9rique de propagande,\u2026) nous voyons que l\u2019importance de se retrouver sous un arbre de valeur est d\u2019une grande importance en ce moment. Les outils sont l\xe9gions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration d\xe9centralis\xe9s : Github. Tous ont une arm\xe9e de fans, mais tous ont le m\xeame probl\xe8me : si il n\u2019y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau d\xe9cor. C\u2019est comme donner des outils de permaculture \xe0 un fermier industriel : si il ne voit pas que les valeurs partag\xe9es sont un atout majeur, il restera avec ces m\xe9thodes classiques.\nLa Culture de la collaboration\nComme n\u2019importe quelle autre id\xe9e soci\xe9tale, elle devient omnipr\xe9sente quand elle est vue comme une partie de notre \u2018culture\u2019. Mais aucune id\xe9e n\u2019a fait partie de la soci\xe9t\xe9 sans avoir \xe9t\xe9 confectionn\xe9e d\u2019une mani\xe8re ou d\u2019autre. Un premier pas pour aller vers cette \u2018Culture de la collaboration\u2019 est de voir l\u2019information comme un bateau qui doit arriver \xe0 bon port. Ca ne sert \xe0 rien de tenir l\u2019information pour soi, partage la avec la bonne personne, passe les bonnes id\xe9es comme si c\u2019\xe9tait un plateau de charcuterie \xe0 une soir\xe9e raclette. Chaque personne prendra bien soin de choisir l\u2019info qui lui convient le plus.\nCar une information qui v\xe9hicule librement aide \xe0 am\xe9liorer le deuxi\xe8me point : Ne perdez plus d\u2019\xe9nergie \xe0 r\xe9inventer la roue mais essayer de contribuer avec des projets d\xe9j\xe0 existant. C\u2019est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d\u2019autres informations qu\u2019on apprend beaucoup. Rester dans son enclos n\u2019aide personne, m\xeame si le r\xe9flexe protectionniste se comprend : vous voulez contr\xf4ler votre id\xe9e contre un opportunisme qui pourrait se cacher derri\xe8re chaque recoin. Mais si nous acceptions, comme c\u2019est d\xe9j\xe0 le cas dans les recherches universitaires, d\u2019avoir un syst\xe8me de mentions g\xe9n\xe9rales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme.\nRecr\xe9er la membrane de confiance\nCar voil\xe0, le grand probl\xe8me qui se cache derri\xe8re cette peur inn\xe9cessaire de la protection d\u2019information: on \xe0 perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se m\xe9fier de l\u2019autre. Car comme disait ce bon vieux Sartre: L\u2019enfer c\u2019est les autres. Mais si nous relisons la th\xe9orie du Darwinisme social nous voyons que c\u2019est notre aptitude \xe0 collaborer qui \xe0 fait que nous avons surv\xe9cu aux animaux dix fois plus grand que nous, aux p\xe9riodes glaciaire et aux famines.\nPour recr\xe9er cette membrane de confiance nous ne devons pas croire dans \u2018les grand mouvements\u2019, car comme les grandes histoires, elles sont mortes avant d\u2019entrer dans la p\xe9riode post Moderne. Soyons comme Enspiral, un r\xe9seaux de petit groupes. Cr\xe9ons des petits faits, pour r\xe9apprendre \xe0 se faire confiance. On ne doit pas d\xe9crocher la lune, mais simplement savoir aider son voisin. La petite pierre que j\u2019apporte \xe0 cet \xe9difice est de prendre le caf\xe9 chaque matin avec quelqu\u2019un d\u2019autre, d\u2019\xe9couter son histoire et de voir ou je peut faire du lien.\nL\u2019ego doit donner place \xe0 l\u2019id\xe9e\nDans notre soci\xe9t\xe9 contemporaine nous donnons encore et toujours trop de place \xe0 l\u2019ego, qui l\u2019emporte souvent en discussion de l\u2019id\xe9e. Mais voil\xe0 si nous voulons vraiment cr\xe9er une culture de la collaboration nous devons mettre en place des freins \xe0 l\u2019ego. De pouvoir \xeatre fier de l\u2019ajout qu\u2019on a donn\xe9 \xe0 une id\xe9e. Ne plus voir la collaboration comme une simple \xe9conomie du (mauvais) couple, ou chacun donne et qu\u2019on fait les comptes quand \xe7a ne va pas, mais se focaliser sur l\u2019id\xe9e et les valeurs v\xe9hicul\xe9es en commun.\nPour \xe7a la collaboration doit se faire par les faits et non par les mots. Trop souvent la r\xe9union pr\xe9c\xe8de la participation, mais c\u2019est en faisant qu\u2019on apprend plus de la personne, que chaque personne est mise \xe0 nue. Une expression invent\xe9e par Nicolas de OpenFab trouve ici parfait \xe9cho: nous devons cr\xe9er l\u2019atome de FAIRE.\nUn prochain pas pourrait \xeatre de redonner dans notre \xe9ducation collective une vraie place \xe0 la collaboration. Pas de travail- en groupe forc\xe9 qui mal organis\xe9 nous prouve que l\u2019enfer c\u2019est vraiment les autres, mais une culture de la collaboration ancr\xe9 dans le syst\xe8me d\u2019\xe9ducation g\xe9n\xe9ral.\nSi vous avez des ressources la-dessus je suis preneur.\nHoward Rheingold | Who Said Collaboration Wasn\u2019t Sustainable\nJason Louv |The Next Buddha Will Be a Collective\nDaniel Christian Wahl | Collaboration and empathy as evolutionary success stories\nEnspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals', u'entity_id': 33747, u'annotation_id': 7216, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u"Back in the hippie glory days some of the more spiritually-inclined ones of us routinely engaged in this sort of mini-meditation with another person. It wasn't structured; we would just do it when we felt like it.\xa0 It often led to better mutual understanding and empathy, which was usually discerned in whatever conversation followed the session.", u'entity_id': 17086, u'annotation_id': 7215, u'tag_id': 781, u'entity_type': u'comment'}, {u'quote': u'A key takeaway for me personally is this: in a lot of cases what breaks how we think about mental illness is the belief\xa0that it needs to be fixed, that patients\xa0need to go back to some initial state of wellbeing;\xa0families, through proximity and attachment,\xa0are\xa0most prone to exemplify this in the daily lives of someone recovering after treatment -\xa0through a way of expressing emotions like 1) criticism 2) hostility 3) emotional overinvolvement. The mechanisms seem complex (can be subtleties, or\xa0just body language..), but it turns out that\xa0all 3 point to how difficult it is for family to accept and empathize,\xa0and only load too much pressure on the person in question.\xa0Strangers, on the other hand, do not really care THAT much and can be better healers because they "don\'t see you as a bundle of problems that need to be fixed".', u'entity_id': 13011, u'annotation_id': 7214, u'tag_id': 781, u'entity_type': u'comment'}, {u'quote': u'That being told, I must confess, I couldn\'t imagine how it must be to find oneself in such a situation. If I don\'t know their needs and wishes, how could I possibly dare saying that I\'m helping with whatever I think that would help them?\n\nIf a refugee wishes for work, it almost automatically seems like a matter of impossibility: "We cannot even provide our own people with jobs, how do you think you would fit into that picture?" Maybe, that was a misunderstanding. Maybe, what was meant was rather: "I\'m tired of sitting around all day. I want to feel useful again. I don\'t want to be helped only. I also want to be in a position of helping others!"\n\nI once helped supplying refugees with clothes. Our group of volunteers carried box after box and it would happen that some of the refugees ask to help us. We would refuse their offers and told them that it\'s okay to go rest and let us do the work.\nI didn\'t realise at that time that we treated them like children, belittling them, taking their integrity and giving them the feeling of uselessness. Out of arrogant goodwill.\n\nSo how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It\'s clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?', u'entity_id': 665, u'annotation_id': 7213, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'A related approach can be found in the various devices that exist to simulate old age. Suits like \u2018GERT\u2019 are designed to make the wearer feel the impairments that come with aging: stiffness and limited mobility, decreasing strength, blurred sight, muffled hearing. The concept was originally developed to enable caretakers of elderly people to better understand the needs and fears of their patients. Now, gadgets with similar effects, designed by students at Weimar University, are being exhibited at the Hygiene Museum in Dresden, allowing the public to gain the same understanding.', u'entity_id': 511, u'annotation_id': 7212, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'I wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched.', u'entity_id': 548, u'annotation_id': 7211, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'I would be interested to see if some interventions can trigger more emphatetic treatments and how that affects patient\xa0wellbeing. Things like "Hello my name is..." campaign for practitioners to\xa0be more humane, or the other day I was reading about inserting empathy in the medical studies -\xa0"What Medical Residents Learn from Art Museums". \xa0These things\xa0don\'t feel too sophisticated things to do for apparently very high returns. We all seem to\xa0agree that "more empathetic" is better for patients wellbeing, not just satisfaction which is more obvious.', u'entity_id': 13150, u'annotation_id': 7210, u'tag_id': 781, u'entity_type': u'comment'}, {u'quote': u"I'm Noemi, and like you I was disappointed at the lack of empathy people around manifest when it comes to displaced populations.", u'entity_id': 9719, u'annotation_id': 7209, u'tag_id': 781, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 7208, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'Connection \u2192 Empathy', u'entity_id': 5405, u'annotation_id': 7206, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'When does storytelling create empathy? What are the conditions? That it create a connexion to the other person\u2019s circumstances.', u'entity_id': 5405, u'annotation_id': 7205, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'Common experiences \u2013 if I have been through an experience, am I more equipped to support the other facing that experience?', u'entity_id': 5405, u'annotation_id': 7204, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'Important concepts for care (therefore to include into storytelling practice):\n\n\n\n Communion\n\n\n\n\n Compassion\n\n\n\n\n Self-care\n\n\n\n\n Awareness\n\n\n\n\n Why you help and whether you are more helped yourself.', u'entity_id': 5405, u'annotation_id': 7203, u'tag_id': 781, u'entity_type': u'post'}, {u'quote': u'n the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?', u'entity_id': 860, u'annotation_id': 7223, u'tag_id': 782, u'entity_type': u'post'}, {u'quote': u"It's important what you say about how we can become precious about the problem and lose sight of the people. There's something very meaningful in your description of the mother's response to technological solutions. Did\xa0the insight\xa0about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might\xa0design technological responses that generate more human connection rather than displace it?", u'entity_id': 8467, u'annotation_id': 7222, u'tag_id': 782, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 669, u'annotation_id': 7221, u'tag_id': 782, u'entity_type': u'post'}, {u'quote': u'The question is more to create opportunities for people to be really active (refugees as #nospectators). There are language barriers, cultural misunderstandings, different contexts of life, different expectations.', u'entity_id': 515, u'annotation_id': 7220, u'tag_id': 782, u'entity_type': u'post'}, {u'quote': u"4 years old project, we are opening a huge house to help people out of the marge, we will have 20 showers, 150 lockers, medical service, laundries, a pharmecy, and other needed services for this part of people, which is missing\xa0\nSecond pillar is activities: DoucheFlux is 50m2 at the moment, so we work at other spaces, we make activities that promote self esteem for these people, they are totally embedded in the system, they can't escape what is happening about them, they find it difficult to get further, so their mechanism is that they just stop trying, because they don't feel empowered anymore\nDoucheflux helps them to get more self-esteem, but it is difficult because sometimes it feel that we are infantilizing them, and if you do that mistake they don't come anymore\nThe challenge: another way to make social work, so not only people that studied for the social sector. To take the social dream out of the social field and bring it to other fields. Because they are fed up of all the social help, they just want a happy life: it is not only important to have an home, but also to create great moments. To create equal relationships. break racism against the poor.", u'entity_id': 541, u'annotation_id': 7219, u'tag_id': 782, u'entity_type': u'post'}, {u'quote': u"This is really nice to hear. Was just talking with 2 of my Syrian friends and they said it's very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.", u'entity_id': 31536, u'annotation_id': 7218, u'tag_id': 782, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 7217, u'tag_id': 782, u'entity_type': u'comment'}, {u'quote': u'I\'d like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma\'s through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings "Circles of openness".\xa0\n\nSome of the meetings were extremely fruitful and transformative. Others were okay and sometimes a bit boring. What determined the quality of the meetings was the openess and willingness to share from an honest and authentic place, and to really be curious to share what feels exciting and challenging to someone. During the meetings where the mayority of the participants was willing to listen and feel into what\'s relevant at that time, there was a magical openness and connection among the group. I truly enjoyed these meetings and they were one of the most beautiful shared moments of my life. What I also enjoyed is the power to transform through awareness. By expressing a doubt or a challenge and openly looking at it, it became possible to take distance from the perspective and let go of it. Also the awareness of the group seemed to stimulate and hold space for sharing these vulnerable perspectives.\xa0\n\nWhat didn\'t work so well was:\n\n\nwhen people spoke in general terms and theoretically/ hypothetically without really feeling the question.\xa0\nwhen people didn\'t really want to be there', u'entity_id': 6401, u'annotation_id': 12574, u'tag_id': 784, u'entity_type': u'post'}, {u'quote': u'Alberto: We are often preaching to the converted and need to reach to the groups we work for. Try to use aesthetics to seduce the viewer who might not be interested in social issues \u2013 to look at the project as an asthetic work, so they can make their own decisions.', u'entity_id': 6372, u'annotation_id': 7231, u'tag_id': 784, u'entity_type': u'post'}, {u'quote': u'That\u2019s by getting into anything that is public participation, getting lots of groups together.', u'entity_id': 6415, u'annotation_id': 7230, u'tag_id': 784, u'entity_type': u'post'}, {u'quote': u'What I am interested in when talking about communication is how it leads\xa0to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown\xa0of Ghent is pretty bad.\nIt might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or\xa0moneywise) aspect. Your work as an artist is potentially a\xa0great help.\nHas your work on making complex issues around\xa0bodies of water acessible somehow contributed to citizen-led research?', u'entity_id': 21041, u'annotation_id': 7229, u'tag_id': 784, u'entity_type': u'comment'}, {u'quote': u"Hello\xa0@IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real\xa0strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which\xa0you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.\xa0\nI wish you all the best in your efforts.", u'entity_id': 8154, u'annotation_id': 7228, u'tag_id': 784, u'entity_type': u'comment'}, {u'quote': u'Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.', u'entity_id': 848, u'annotation_id': 7227, u'tag_id': 784, u'entity_type': u'post'}, {u'quote': u"The fourth category\xa0connects with what Dougie Strang of Dark Mountain referred to during our chat as \u2018deep encounters\u2019 and this is something that I'm keen to\xa0explore further. How do we facilitate these kind of experiences?\xa0Might this be one mode of Simon's 'enculturation'?\xa0\xa0(This might be worth a separate blog post...)", u'entity_id': 6462, u'annotation_id': 7232, u'tag_id': 785, u'entity_type': u'post'}, {u'quote': u'The goal was to understand more on how about enforcing the regulations about an access ramp before the shop that can be removed when is not needed.', u'entity_id': 850, u'annotation_id': 7234, u'tag_id': 786, u'entity_type': u'post'}, {u'quote': u'It was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders.', u'entity_id': 819, u'annotation_id': 7233, u'tag_id': 786, u'entity_type': u'post'}, {u'quote': u'@silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through\xa0mobility ramps- not indoor though..).', u'entity_id': 24832, u'annotation_id': 7238, u'tag_id': 787, u'entity_type': u'comment'}, {u'quote': u'place serious cleanup\xa0efforts. But for most small manufacturers in my native Emilia, these were just costs. The benefits went, by definition, to the\xa0whole planet.\xa0\nHowever, here\'s what happened over the decades: businesses started to realise they had done (albeit kicking and screaming)\xa0the decent thing. The region had become more livable. As a territory (and not so much as single\xa0businesses) they had indeed gathered some competitiveness.\xa0\nIn your case, I think, "it\'s an opportunity" is a little more true. Your barber salon\xa0or gorcery store\xa0has a\xa0ramp. The parent with the stroller, the person in the wheelchair can get in easily. They get a good experience. They are more likely to come back to you. But even here, I suspect that the "area" approach is going to be stronger: the message that registers is not "you, personally,\xa0can gain a business advantage by servicing people with reduced mobility", but "here in Milano we make everyone feel welcome". Not so much the extra profit, but the civic pride. Not the homo oeconomicus, but the "we".', u'entity_id': 19824, u'annotation_id': 7237, u'tag_id': 787, u'entity_type': u'comment'}, {u'quote': u'Speaking of incentives, I heard good things about the CarrotMob approach Generically speaking,\xa0the logic behind it is pretty cool: businesses who agree to make changes in how they work get a boost in consumer support. I\'m sure Milano must have similar groups of community organisers that can (again) be credible interfaces - so "mobs" actually show up and make a difference in the incentive structure.', u'entity_id': 10471, u'annotation_id': 7236, u'tag_id': 787, u'entity_type': u'comment'}, {u'quote': u'Going where innovation beats\xa0we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into\xa0co-design sessions pivoting around their necessities may generate unexpected outcomes.', u'entity_id': 819, u'annotation_id': 7235, u'tag_id': 787, u'entity_type': u'post'}, {u'quote': u'A conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can\u2019t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.', u'entity_id': 861, u'annotation_id': 7242, u'tag_id': 788, u'entity_type': u'post'}, {u'quote': u'Hi @Noemi!\nThe kick off event had a good start. During the\xa0first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind).\nThanks for the support!', u'entity_id': 14118, u'annotation_id': 7241, u'tag_id': 788, u'entity_type': u'comment'}, {u'quote': u'reHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.', u'entity_id': 33751, u'annotation_id': 7240, u'tag_id': 788, u'entity_type': u'post'}, {u'quote': u"Our proposal is that it should be an 'association' of participants (the patients), mentors (patients who done it) and facilitators (e.g. us-researchers, clinicians, etc....)\nParticipants come and see if WeHandU has a solution \xa0that solves the problem. If yes, then they becomes associates with a moral obligation to become mentors (helping newbees). This part should be free. Eventually facilitators time has to be payed in some way (It's probably impossible to convince a professional therapist\xa0to work for free)\nAre there some projects we can learn from?", u'entity_id': 17893, u'annotation_id': 7239, u'tag_id': 788, u'entity_type': u'comment'}, {u'quote': u'entrepreneur', u'entity_id': 35574, u'annotation_id': 11936, u'tag_id': 2426, u'entity_type': u'post'}, {u'quote': u'nice to meet you and\xa0thank you so much for sharing your brothers story! "I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape." Do you know of any good\xa0projects like that? Something like the\xa0Unmonastery perhaps, or are you thinking of something different?', u'entity_id': 17386, u'annotation_id': 7245, u'tag_id': 790, u'entity_type': u'comment'}, {u'quote': u'I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.', u'entity_id': 16370, u'annotation_id': 7244, u'tag_id': 790, u'entity_type': u'comment'}, {u'quote': u"@Noemi, My two cents about your questions. The ethical suffering can occur in any organization where it is required to do things that are too far from what actual work should look like in the eyes of the concerned people who are passionated about what they do.\nI've observed such situations in not for profit AND in for profit organizations even though the purpose and the values behind the organization were sensefull for people. It is about the meaning of the work to be done and the way it is asked.", u'entity_id': 24331, u'annotation_id': 7247, u'tag_id': 791, u'entity_type': u'comment'}, {u'quote': u'One main finding made by field researchers about burn out is that one of the main factors that leads people to burn out is "ethical suffering" (litteral translation of the original expression in French "souffrance \xe9thique") and', u'entity_id': 15056, u'annotation_id': 7246, u'tag_id': 791, u'entity_type': u'comment'}, {u'quote': u'I am wondering, the case of CRISPR the issues are just on ethics and safety? Or behind there is the need of protection of biotechnology industry. \n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentopen science\n  \n    \n    Edit\n    Delete\n  \nNo Commentbiohacking\n  \n    \n    Edit\n    Delete\n  \nNo Commentregulation\n  \n    \n    Edit\n    Delete\n  \nNo Commentopen hardware\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 37593, u'annotation_id': 11831, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u'I think the diybio code of ethics has transparency as its first principal\xa0for a very good reason - it gives a moral high ground that I think can override\xa0such questions of risk @WinniePoncelet, especially when you consider those\xa0options for cc, so open stays forever open and non-profit (thanks for pointing this out, @Alberto !)!\xa0\nTo me, the worst is when an idea is squashed because others decide to protect it for their own profit\xa0- but if it is all in the open to start, we should all benefit. \xa0\nIdealistic? \xa0perhaps...', u'entity_id': 16714, u'annotation_id': 7259, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u'thanks! \xa0apparently an acoustic based sensor that recognises running water sounds is the basis for the water stewardship plan (non-evil IoT! so many projects and ideas out there - it is implementation that is always the biggest challenge imho!', u'entity_id': 12391, u'annotation_id': 7258, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u'Hi!\nThe diybio.org group made this code in 2011, as far as I know. \xa0We have a handout for prospective members of Hackuarium\xa0that includes it too...\n\xa0Here it is:\nTransparency\nEmphasize transparency and the sharing of ideas, knowledge, data and results.\nSafety\nAdopt safe practices.\nOpen Access\nPromote citizen science and decentralized access to biotechnology.\nEducation\nHelp educate the public about biotechnology, its benefits and implications.\nModesty\nKnow you don\u2019t know everything.\nCommunity\nCarefully listen to any concerns and questions and respond honestly\nPeaceful Purposes\nBiotechnology must only be used for peaceful purposes.\nRespect\nRespect humans and all living systems.\nResponsibility\nRecognize the complexity and dynamics of living systems and our responsibility towards them.\nAccountability\nRemain accountable for your actions and for upholding this code.\nDIYbio code of ethics, Draft from the European Delegation, May 2011\xa0\n\xa0\nProbably there could be many versions of this out there now, of course!\nI should also note that DIT Research is more close to my heart (do it together!) than the original diybio... ciao for now,\nRachel', u'entity_id': 33818, u'annotation_id': 7257, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u"That's not quite the plan we've got planned for the project.\xa0We share your concern for questions of safety and ethics so we are only trying to accomplish a proof of concept right now.\nThe goal is first to make normal human insulin\xa0using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the biosimilar regime, which is mid-way between the rigor required in vetting an entirely new drug and that required of a copy of an old one made with strictly chemical means. This was the plan we outlined in our original crowdfunding pitch and remains our current thinking.\nWe'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a \xa0prospect,\xa0I doubt there would be enough that's novel about our work to qualify it as fundable science.", u'entity_id': 26033, u'annotation_id': 7256, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u"It's a valid point, @Rune . Honestly I am really scared by the ethical implications of research,\xa0any\xa0research. They can be paralysing. Of course, if your tools are lasercutters rather bioreactors, and your goal is design rather than human health,\xa0the ethics become less scary.\xa0\nIn practice, though, insulin is insulin. There are ways to test whether a chemical is, indeed\xa0insulin, or something else. And if it is, you are good: the same molecule should work in the same way, no matter its production process. Also, GMOs per se are not illegal in the U.S. Their attitude is very different from that of Europe.", u'entity_id': 24843, u'annotation_id': 7255, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that\xa0 get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)?\n\nIf I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and\xa0 3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based\xa0 research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?", u'entity_id': 23568, u'annotation_id': 7254, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u'I would like to start from the bottom of it. Transforming patients (or their closest carers) into makers is an interesting perspective. We know from citizen science that this first hands involvement often offers a stimulus to personal studies, and reflection about the identity of the problem, and the problem holder. One could argue this is an even more important potential benefit than the access to the devices in itself.\n\nHowever, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be "ok, let\'s ignore this step and bypass it".\nThere are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents\' costs, etc on the side of providers).\nOf course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that\xa0is almost\xa0"ethical": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as\xa0gut feeling here, but I am open to discuss it in depth later)\xa0the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final "accidents" that will always happen (only that which does not work, will not break).\xa0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model "exploitative", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.\nSo, what would be the general ecosystem\' services that would keep this garden grow orderly? I don\'t see this answered (that\'s not an easy one,\xa0indeed)\nResearch, and "citizen science", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.\nFor the sake of our understanding, let me be pedant and allow me to stress that\xa0disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status.\xa0A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a "because".\n\nI would like to not dig too deep in the question about why the current "solutions" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let\'s be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don\'t normally ask themselves questions like "how long will this work continuously?", "what will be the safety mechanism once it turns off, as instance because of battery exhaustion?", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?",...\nLet\'s not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter "being poor means having too much end of the month"... it may steal a smile, but it\'s a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.', u'entity_id': 23523, u'annotation_id': 7253, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u'And this is without mentioning the ethical conflicts that workers can have between their own values and those shown withing the organizations they work for. And this is another (big) story.', u'entity_id': 15056, u'annotation_id': 7252, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u"As @markomanka remind us: \xa0...it will break.., but let's skip the simple logical stuff to which we all agree (Being ethical correct, Good Clinical Practice, Protect privacy, Helsinki declaration, Risk assessment\u2026) and make some foothpaths in the illogical legal jungle, mapping the traps and dangerous animals. Let\u2019s also stick to EU continent of bureaucratic beasts.", u'entity_id': 5913, u'annotation_id': 7251, u'tag_id': 792, u'entity_type': u'post'}, {u'quote': u'hat the former reshape markets to make it better for an overwhealming majority, while the latter just want to stay outside markets for a bigger margin', u'entity_id': 19056, u'annotation_id': 7250, u'tag_id': 792, u'entity_type': u'comment'}, {u'quote': u"They involve and require a deep understanding of healing and medical practice, especially the ethical considerations for both caregivers and care recipients. Can Marco, Massimo's and other's work in the field and in the lab help us to identify and understand how to deal with these issues? In the research as well as in the intiatives themselves?", u'entity_id': 5479, u'annotation_id': 7248, u'tag_id': 792, u'entity_type': u'post'}, {u'quote': u'But, in light of the collaboration with Anders this week, @Alberto , this seems like it would be a really cool dataset to compare with Open Care. Similar themes, different structure ---- could be great. Also such a cool initiative! Thanks for sharing @WeMHNurses_Team !', u'entity_id': 16270, u'annotation_id': 12575, u'tag_id': 793, u'entity_type': u'comment'}, {u'quote': u'We aim\xa0here to present briefly\xa0C\u0153ur d\u2019Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution. \xa0Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity.', u'entity_id': 672, u'annotation_id': 7264, u'tag_id': 793, u'entity_type': u'post'}, {u'quote': u'An ethnography of makers collaboration. How important is the space? How important is StackOverflow or similar? What constitues "good" collaboration (Alessandro: "the less interactive and more efficient, the better")?', u'entity_id': 6069, u'annotation_id': 7263, u'tag_id': 793, u'entity_type': u'post'}, {u'quote': u'Europe is not going through a Soviet-style collapse. (Or not yet:\xa0a report from UBS Investment Research\xa0in September 2011 estimated the costs of a break-up of the Eurozone at 40-50% of weaker countries\u2019 GDP in the first year and 20-25% of the GDP of countries like Germany. For comparison, the total fall in GDP during the break-up of the USSR is estimated at 45%, spread over the years from 1989 to 1998.', u'entity_id': 493, u'annotation_id': 7267, u'tag_id': 794, u'entity_type': u'post'}, {u'quote': u'OVN, contributions to a process, be it tangible items such as time and money or intangibles such as social capital, are recorded and whatever benefit is derived from this process is proportionally divided and distributed back to contributors. This makes open networks sustainable, by allowing the implementation of capturing and redistribution mechanisms. Networks have yet to gain public recognition, legitimacy and legality, but the jury is out already, the OVN model makes open networks fully capable socioeconomic agents.', u'entity_id': 538, u'annotation_id': 7268, u'tag_id': 795, u'entity_type': u'post'}, {u'quote': u'Today I met with Michiel, Bram & two students of UGent who were interested in teaming up to develop this further. We think the first step is to build an existing device ourselves to familiarize with it:\xa0the OpenDrop of GaudiLabs (http://www.gaudi.ch/OpenDrop/). Asking around for a fablab to host us and then find a date in the coming weeks.\nNext up is trying to culture some E.coli on it and prepare for the Biohackathon in Waag (Amsterdam) on 7-8-9 July.\nWho else wants to join in for preps/experiments/biohackathon?', u'entity_id': 20733, u'annotation_id': 7273, u'tag_id': 796, u'entity_type': u'comment'}, {u'quote': u"Masters of Networks is open to all, and especially friendly to beginners. Patients, network scientists, doctors, hackers and so on all have something to contribute. But in the end\xa0we are all experts in this domain. We all\xa0give and receive care\xa0in the course of our lives, and all humans are expert conversationalists. \xa0There's an extra bonus for beginners: networks are easy to visualize. And when you visualize them, as we will, they are\xa0often beautiful and intuitive.", u'entity_id': 5260, u'annotation_id': 7274, u'tag_id': 797, u'entity_type': u'post'}, {u'quote': u'We are the families of the "Oltrarno", the other or wrong side of the Arno river in Florence, Italy.\nFacing a tough challenge - surviving in the Disneyland of the Renaissance, as a community.\nRight behind the Carmine church, where the Renaissance was born,\xa0families of the most varied background - both traditional and immigrant - run a garden which was donated to the population of the district by the American Red Cross in 1920 and has since been largely seized by a real estate speculator.\nA cross-section of ordinary people of every kind, who are beginning to work together to develop new ways of survival, friendship and beauty\xa0in an era where the "state" is no longer the key actor.\nAs we discover our own needs, our strength, the power of working together, we find that we have a whole world of prospects before us, something much larger than the garden we started out with.\nWe are here to listen and to learn, and of course we would be glad to show you around our side of Florence, should you ever drop by!', u'entity_id': 766, u'annotation_id': 7275, u'tag_id': 798, u'entity_type': u'post'}, {u'quote': u'cleared', u'entity_id': 39328, u'annotation_id': 11636, u'tag_id': 798, u'entity_type': u'post'}, {u'quote': u"Dear @steelweaver, I do appreciate your references, but\xa0cochrane reviews\xa0are better in supporting the statements. Personally I have proposed some studies but apparently 'scientific approach' is disturbing the 'chi'. However we surrender to a universal law 'effectiveness is the measure of truth' \xa0and we have a moral obligation to strive for the most effective treatment (leave the measure of effectiveness open for now) regardless of our personal beliefs, hopes and dreams.", u'entity_id': 19479, u'annotation_id': 7277, u'tag_id': 799, u'entity_type': u'comment'}, {u'quote': u'@steelweaver, this is really interesting. Acupuncture has loong been considered alternative medicine. Lately it has become evidence based. Do you have objective evaluation of the effectiveness of your treatments?', u'entity_id': 19386, u'annotation_id': 7276, u'tag_id': 799, u'entity_type': u'comment'}, {u'quote': u'There is a concept at the crossroads of evolutionary biology, anthropology and psychology\xa0called cultural evolution. The idea is that, in humans, culture and biology intertwine dynamically: evolutionary pressure makes us evolve mixed packages of genes and culture that make us fitter for survival. These packages repurpose and harness pre-existent packages. If you want to know more, this book is a fantastic introduction.', u'entity_id': 19934, u'annotation_id': 7278, u'tag_id': 800, u'entity_type': u'comment'}, {u'quote': u'Interesting - thanks - another example which might be worth a look:\xa0http://cooperativa.cat/en/cooperative-public-system/health/', u'entity_id': 16546, u'annotation_id': 7285, u'tag_id': 2044, u'entity_type': u'comment'}, {u'quote': u'Laurent: 3 different projects, which have something in common, with people being excluded by the system because they are poor or sick. Empowerment for these populations is at the core of each project. Behind each there is a diagnosis of how the excluded population can have lost access to institutional support.\xa0If something is possible, it is on the edge, where people can regain access to their lives.', u'entity_id': 541, u'annotation_id': 7286, u'tag_id': 802, u'entity_type': u'post'}, {u'quote': u'In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising.\nAt home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape?\nThrough the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase).\nThe information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight.\nCurrently there are all kinds of \u2018food fanatics\u2019 and \u2018health hypes\u2019. We are convinced that healthy food should not be a trend. We don\u2019t want to focus on trends or hypes; our focus lies at informing people about healthy food and \u201cback to basic\u201d. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don\u2019t have enough time to guide a patient in the best way and many dieticians follow the \u2018old\u2019 rules and are promoting the medical food of the pharmaceutics industry.\nWe want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu\u2019s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy.\nNext to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.\nFiguring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects.\nChallenge\n(Customized) advice serving cancer patients during treatment (chemo, radiation,\u2026) to ensure optimal nutrition and exercise.\n\nfocusing on natural instead of artificially produced ingredients\nemphasizing the importance of regular and moderately intensive exercise.\n\nChannels\nShort-term: online (info and community)\nLong-term: face to face (workshops on two main subjects)\nActivities:\n\ndevelop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc.,\ncontact points in the Netherlands on sports coaches to contact for guidance,\nset up sports projects and readings about healthy food and sports for cancer patients,\ncreate communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don\u2019t have a partner.\n\nType of community involved\nCommunity consists of cancer patients (no age restrictions or type of cancer)\nSolution proposed; effect on users life?\nEnsure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.\n\xa0\nHow is it open?\nIt is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)\n\xa0\nHow does it \u2018care\u2019?\nThis platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects \u201chealthy nutrition\u201d and \u201cexercise\u201d. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.', u'entity_id': 711, u'annotation_id': 7288, u'tag_id': 803, u'entity_type': u'post'}, {u'quote': u'I find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW.', u'entity_id': 562, u'annotation_id': 7287, u'tag_id': 803, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 30614, u'annotation_id': 12580, u'tag_id': 2045, u'entity_type': u'comment'}, {u'quote': u'there are 68 clinics organized in Greece . Take a moment to absorb the implications of this fact: in four years, thousands of enterprising Greeks, without money, without a command structure, without even knowing, have created a parallel health service that succeeds where the public health service and private healthcare fail: it maintains in relative security the poorest sections of the population. It should be noted: The Greek state has spent over 6 billion euros in health care in 2011.', u'entity_id': 4913, u'annotation_id': 13129, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 12581, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'In my context, international partnership is very helpful, because our Government doesn\u2019t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner\u2026like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don\u2019t know our realities. They don\u2019t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.', u'entity_id': 37591, u'annotation_id': 11813, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11781, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Podcast Description: "This way of life is a war against our bodies. The air polluting our lungs, our breast milk filled with toxins, and our mental angst driving us to suicide. Proposed health cuts increase our general precarity in relation to a failing health system, a health system that fundamentally furthers our objectification and dependency on capital. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy. We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. From the Greek solidarity clinics to the Zapatistas \u201chealthcare from below\u201d to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. We begin by finding each other. This podcast will be a step in that journey."', u'entity_id': 35814, u'annotation_id': 11587, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'chronic embitterment within organisations that seem incohernent.', u'entity_id': 6685, u'annotation_id': 7329, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u"For a while we were disheartened to see people we\u2019d worked with on issues of addiction appear back at our doors. What were we doing wrong? We were adamant that we did not want to be another revolving door for people stuck in the cogs of a poverty industry or disease factory. Slowly we realised - by classical 'analysing our own reality' - that the systems and relationships beyond our doors and beyond our direct influence were considerably more effective at creating disease and dysfunction than we could ever be at resolving it - especially on grant funded (frequently cut) project work, creating environments where people could find greater health and humanity. And now we know the imperative of both - to be there when people need us on the renewed understanding that many diseases and social ills are adaptations to the dysfunction in our wider systems. On its own, this would amount to little more than sticking a finger in a crack in the harbour wall in the face of a tsunami. So now we understand that working to influence system change is also essential to not only the health in individuals but increasingly the survival of our communities. I find what Deborah Frieze refers to as\xa0'hospicing the\xa0dying' in relation to systems\xa0helpful - an important aspect of care work in our times. What is called for as old systems collapse? How do we work to illuminate and support the emergence of the new?", u'entity_id': 13972, u'annotation_id': 7328, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women\u2019s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.', u'entity_id': 6376, u'annotation_id': 7327, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Galway City Community Network (CCCN) - they tried to influence the council. Galway got a Greenleaf award - there were events promised, funding,... and nothing happened. Currently all the environmental groups are putting pressure for something to actually happen, by going international: \u201cBecause we\u2019re officially registered we wrote to the Council through Galway\u2019s CCCN. The next stage is to go directly to the Greenleaf in Europe\u201d.', u'entity_id': 6415, u'annotation_id': 7326, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'A participant even talked about how power be embedded in institutions when it comes to filling forms to satisfy some requirements and how institutions make things difficult.', u'entity_id': 850, u'annotation_id': 7325, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Hello @Alberto, I enjoyed your Spawning the Reef blog post. Reminds me of Ivan Illich\u2019s Tools for Conviviality; the big machines we created - perhaps health and social care institutions are the best examples of this - no longer serve humanity. In our own workshops, in watching how people positively respond to being needed instead of being \u2018treated\u2019 - I cannot help feel strongly that more than services,\xa0people need to be themselves needed - part of their solution. Too many of the ways our societies are set up make this difficult. Margaret Wheatley said \u201cA life well lived is one in which we each find an opportunity to give our gifts rather than have our needs met.\u201d and in my experience communal spaces create more opportunities for this to happen and meet more of the spectrum of human needs that our current divided lives make possible.', u'entity_id': 23520, u'annotation_id': 7324, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'That led me to feel that there is no future in publicly-funded programmes, particularly when they involve asymmetric power relationships - a local authority, for example, can simply dictate to minor partners how a budget will be deployed. This is partnership in name only,\nSo, I and my wife Lisa started "Makers" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that\'s completely self-sustaining', u'entity_id': 14151, u'annotation_id': 7323, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'Well, during the last ten years our economy has\xa0been completely \u201cplatformed\u201d: the largest taxi company doesn\u2019t own any cars\xa0(Uber), the world\u2019s biggest media owner creates no content (Facebook) and so on. In almost every sectors a single player with a \u201cplatform business model\u201d dominates.\nThere are two main problems with this:', u'entity_id': 829, u'annotation_id': 7322, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people\u2019s caring and collaborating capabilities and doing so, creating new forms of care-related communities.', u'entity_id': 832, u'annotation_id': 7321, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'But which ended up having to take on the role of innovators and start prototyping stuff, as institutional response was slow.', u'entity_id': 15044, u'annotation_id': 7320, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u"Where progress was slow or absent within the system, we took\xa0it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because\n\u2018it's a community based project concerned with 'well-being' which is preparing fertile ground for the empowerment and transformation of people, individually and as a group. It's organic growth reflects the personalities and desires of the people involved, making it of and for the people.\u2019", u'entity_id': 757, u'annotation_id': 7319, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Laurent: 3 different projects, which have something in common, with people being excluded by the system because they are poor or sick. Empowerment for these populations is at the core of each project. Behind each there is a diagnosis of how the excluded population can have lost access to institutional support.\xa0If something is possible, it is on the edge, where people can regain access to their lives.', u'entity_id': 541, u'annotation_id': 7318, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'The current care system of Greece is characterised by mainstream centralised structures defined (and accepted) by the public health system, marked by chronic problems related to inefficiency, corruption and lack of funding. The severity of the ongoing financial crisis in Greece has further incapacitated the public care system, but it has given rise to a milieu of social, citizen-led projects who leverage volunteerism to care for the most under-privileged parts of the society.', u'entity_id': 736, u'annotation_id': 7317, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Traditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways.', u'entity_id': 796, u'annotation_id': 7316, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u"For myself, the lessons - far and beyond the existance of institutional policies per se - are those which are carried by the people involved: civil servants or citizens directly involved in these processes. For example I remember the story about Rustavi's participatory budgeting and Revaz's enthusiasm to be involved in implementation. However, there is more to learn about the outcomes of it - for example, in Cluj where I live they ran a 3 step process starting from the neighborhood level. But it involved a lot of deliberation - as Alberto was writing above, that means showing up at neighborhood meetings (physical). They nonetheless got to testing it at the city level, but a lot of the energy got dissipated in sending in proposals to compete for online votes\xa0(>400\xa0projects)! and ending up funding very few with little money (1000 eur per winning project - about 50 of them).\xa0 I don't want to think of the amount that went into the administration of it, but you see where this goes. That was in 2014-2015, no news since, and more importantly, it's unclear whether it was considered successful or not in order to move further in an upgraded version. Anyway, this is just an example.. \xa0hope Rustavi will do much better, but also that people running it are considering risks too.", u'entity_id': 30992, u'annotation_id': 7315, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'Participatory processes are designed by civil servants, with other civil servants and "usual suspect" stakeholders (like professional business and trade union representatives)\xa0in mind. In your rural development example, I see that they worked through offline meetings, convened in cities and on weekdays at 11.00 am. That choice is going to prevent the most interesting potential participants (the local entrepreneur, the teacher, the parent of small children...) from showing up. People who reliably do show up are the people paid to participate, like representatives and lobbyists... but those already have channels to talk to the government. The other option would be to convene during the evenings, but, at least in Italy, civil servants do not like this at all. The option is almost never even discussed. So, most of the collective brainpower is ruled out before the process even starts.', u'entity_id': 30886, u'annotation_id': 7314, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'*\xa0Optimistic research. No, rather pragmatic -\xa0If something does not work try something different. The different is to eliminate the last variable (confounder is the term) not yet controlled in 50years of research: FAILING INSTITUTIONS (article on edgeryders).', u'entity_id': 33426, u'annotation_id': 7313, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'Another hypothesis could be an issue of lack of flexibility of the healthcare system, not beeing able to provide state of the art technology to patients !?', u'entity_id': 516, u'annotation_id': 7312, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Currently there are all kinds of \u2018food fanatics\u2019 and \u2018health hypes\u2019. We are convinced that healthy food should not be a trend. We don\u2019t want to focus on trends or hypes; our focus lies at informing people about healthy food and \u201cback to basic\u201d. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don\u2019t have enough time to guide a patient in the best way and many dieticians follow the \u2018old\u2019 rules and are promoting the medical food of the pharmaceutics industry.\nWe want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu\u2019s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy.\nNext to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.\nFiguring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side e', u'entity_id': 711, u'annotation_id': 7311, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u"Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.", u'entity_id': 502, u'annotation_id': 7310, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u"he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either.", u'entity_id': 502, u'annotation_id': 7309, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population\u2019s increasingly complex care needs.', u'entity_id': 758, u'annotation_id': 7308, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'The whole System in itself acted like a cancer: remissions and relapses.', u'entity_id': 517, u'annotation_id': 7307, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'How did things eventually change and what\u2019s the situation so far?\nAfter the article on Hotnews about the Network, a\xa0high number of interviews with the authorities filled the tv news evening after evening. The situation was indeed outrageous: you pay the taxes, you have medicine 100% compensated by the state because you pay those taxes, but when it comes to it, they are nowhere available in Romania, and you have to buy them outside the country.\xa0 Cornered by jurnalists, the Minister of Health made hundreds of promises, with some results. Things were sometimes better, and sometimes worse. The whole System in itself acted like a cancer: remissions and relapses.\nAt the moment, Vlad Voiculescu is the new Minister of Health. After a tragic event in October 2015, known as the Colectiv fire, where 64 people died, the whole Government was changed and a lot of young \u2013 under 45- dynamic people were named in key positions.\nOne of the actions that Vlad took in the short period of time he\u2019s been in charge is to make a\xa0smart alliance with\xa0 more countries: Bulgaria, Moldova, Croatia, Latvia, Macedonia, Poland, Serbia, Slovenia and Slovakia,\xa0 in order to get better access to medication. More countries means more people, so a much\xa0 bigger market, a fact that would discourage the Pharma companies to ignore it by withdrawing a medicine\xa0 by citing\xa0 small numbers in sales.', u'entity_id': 517, u'annotation_id': 7306, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u"How did she know and how does this relate to the problems of cytostatics in Romania?\nFor many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country.\nSo when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was.\nDuring my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was \u201clucky\u201d: only had to buy once dexamethason\xa0for myself, but they were not so lucky:\xa0 either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with \u201dthe dossier\u201d), either they had to figure out how to obtain certain medication themselves.\nBut two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment\xa0 reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn\u2019t.", u'entity_id': 517, u'annotation_id': 7305, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u"I enjoyed reading your well written post @steelweaver ! I have a rich medical history and although I had a brief run in with acupuncture, I never really went for it. I'd still like try it out\xa0when the opportunity presents itself.\nIt's an interesting remark on the authority of health practitioners @steelweaver and @Noemi . I think the reliance on\xa0guidance by an expert\xa0is in large part\xa0the result of the patients\xa0not being as familiar with acupuncture\xa0as the expert. Yet patients\xa0are there for a reason: at some level, they believe in\xa0the positive potential of the treatment. This common\xa0belief of both parties is the base for authority and\xa0lends you, or the practitioner, as an expert the authority to give direction. Authority governs the interaction and when nobody (or nothing) assumes it, confusion arises. To be clear:\xa0authority is different from power.\nI can complement this with my personal experience in the standard healthcare system in Belgium. For a little over 5 years I had a series of serious physical afflictions, which didn't ever seem to heal or resolve themselves and only got worse over the years. At the start I always\xa0left the clinic with a smile, which\xa0always disappeared in days, weeks or months as the situation deteriorated again. I experienced first hand that I was just\xa0a number, and that treating symptoms is faster and\xa0easier. Good thing for pharma companies, because endlessly treating symptoms sells more drugs.\xa0Finding the real cause takes longer, is harder and is more expensive, at least in the short term.\nI got pretty skeptical about the system by going from doctor to doctor and spending more time in physiotherapy than with my friends or family. Gradually I lost belief in the system. It was\xa0after I ultimately found the cause and cure (very simple ones at that) that whatever remained\xa0of my belief vanished.\xa0With that\xa0gone, there was no more common belief between me and the doctor, so the authority vanished. My language can't hide\xa0it: I found the\xa0solution, not a doctor or a system.\xa0For this specific\xa0illness, I will not lend authority very easily anymore either.\xa0I'm lucky, as I have a general idea of healthcare through my studies\xa0and know my body well by now, but this is clearly problematic for the general population when you hear similar stories with unhappy endings.\nAlso interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted).\xa0I think that might be a western thing, linked to what\xa0surfaced in the discussions with @alkasem23 about differences in care with Syria:\xa0in the west we put our trust in and rely on systems rather than other people. In some\xa0other cultures,\xa0people probably put their belief mainly in a person, the doctor.\nEasier interactions through\xa0the internet,\xa0powerful search engines,\xa0a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't\xa0always provide\xa0correct information, these factors also\xa0lead people to challenge the authority in terms of knowledge\xa0of the practitioner in the classical doctor's office. I\xa0think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare.\nImportantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of\xa0experimentation with new methods in the stories here on Edgeryders\xa0share some sort of\xa0community aspect. This\xa0illustrates a shift to lending authority to a\xa0collective rather than a system or a person. The\xa0collective can consist\xa0of patients, doctors or other caregivers and is likely\xa0a mixture ideally. In Syria the collective is mainly the family, according to Alkasem.\nLooking through this lens\xa0of authority\xa0is interesting and can be applied to many aspects of our\xa0daily lives.\xa0The matter is fresh in my head from a Dutch book I just finished reading, which I hope\xa0gets translated\xa0to English. If anyone is interested:\xa0the book builds on work by Hannah Arendt that\xa0you can certainly find", u'entity_id': 18779, u'annotation_id': 7304, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u"Winnie i know what you are discribing, with my years of activism i had\xa0mostly the same kind of experience \xa0with policy makers in Brussels. Getting funds is tricky because you need to behave a certain way because 'they' have the power in hand, you have to calculate who is going to get the portefieulle in next couple of years and so on.\xa0\nBut a couple of days ago a kind of epiphany came accross. In fact like what edgeryders does on care, we can create locally on any topic, creating an easy swarm of projects that can become a lever to not wait till policy is written, but to shape what it is going to be without having to play the political game. We are going to do this exercice with the Brussels makers scene through the FabCity platform of Barcelona. Bringing projects towards organisations and spaces and coordinating these spaces to communicate as one about their needs towards politics. In such way that we don't have the proposal from politics: let's just build 170 fablabs for 2020, but that through the swarm of knowledge know what are really the necesities.\xa0\n\nHope i could contribute to this nice debate;", u'entity_id': 29073, u'annotation_id': 7303, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u"I've been to a few city organised or backed 'workshops' meant to shape the future of the city. The workshops\xa0all lack\xa0the same: citizens present. Generally, they\xa0are organised during working hours and the only participants are civil servants and companies/entrepreneurs that have an economic\xa0stake in the issue. The details of how these workshops go, are pathetic. And it's packaged and sold to the citizens as 'co-creation'. Last one was most striking. A workshop on urban planning,\xa0commissioned by the city and organised by the same organisations that were involved in an ongoing massive real estate scandal. The workshop itself featured only entrepreneurs and project developers, talking about matters that affect everyone.\xa0Already at this basic level, the city fails. How can anything good come from such a basis?", u'entity_id': 28966, u'annotation_id': 7302, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11006, u'annotation_id': 7301, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'To my understanding of OpenCare, then this is the very essence. Breaking out of \u2018failed institutions\u2019 https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship\xa0while staying clear of trouble.', u'entity_id': 5913, u'annotation_id': 7300, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u"I work at one of the public hospitals in the city and regularly help people navigate that system. \xa0But at the end of the day, we don't believe these systems have the answer we are looking for, similar to what @Alberto was talking about in regards to the Amish.", u'entity_id': 29958, u'annotation_id': 7299, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'There is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the\xa0number of emergencies and helping save a lot of money. It sounds very much like Bookchin\xa0to me: small communities tackling local problems, using\xa0collectives\xa0procedures and new technology.', u'entity_id': 26031, u'annotation_id': 7298, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'current state of health in the US is that when people do get sick, they are forced to access health institutions', u'entity_id': 22039, u'annotation_id': 7297, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'In addition, these institutions fundamentally cannot address the issues of climate change, economic collapse, or disruption of key infrastructure', u'entity_id': 521, u'annotation_id': 7296, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u'Why: Because it will fill a need that the healthsector is not meeting. Personalized, responsible selfcare and building a DIRECT bridge between healthcare professionals/researchers and users.', u'entity_id': 12142, u'annotation_id': 7295, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u"Poland each doctor is given a number of tests he can prescribe to people: blood, sugar, more sophisticated ones. BUT, if the doesn't spend them all, he gets PAID for each test he didn't give out. Anyway, it's just one of the pathologies of the system I've discovered - as my family is full of doctors, every time I open the discussion I am more and more stunned by how badly it was designed.", u'entity_id': 13333, u'annotation_id': 7294, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u'0.5% (10%*5%) of the time you feel some human treatment!!!', u'entity_id': 11945, u'annotation_id': 7293, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u"most doctors work in systems which are not humane at all \u2013 and can't be, because they run on an industrial age paradigm. They derive efficiency from scale and standardization, and that requires patients are treated as production batches in manufacturing. Many doctors absolutely hate this, but it's the only game in town. Acupuncture is", u'entity_id': 8207, u'annotation_id': 7292, u'tag_id': 2046, u'entity_type': u'comment'}, {u'quote': u"1) Effective health care - I've lost count of the number of patients who have come in with stories of months or years of expensive National Health Service treatments that made no difference to their conditions, who then see a large reduction in their symptoms after only one or two acupuncture treatments. (Moves to provide acupuncture on the NHS over the last decades have been faltering and half-hearted, and are now suffering from a pushback against anything considered 'alternative' or 'optional' - which is a shame, as it could save the NHS millions).", u'entity_id': 671, u'annotation_id': 7291, u'tag_id': 2046, u'entity_type': u'post'}, {u'quote': u"replying to you, @Noemi , I agree it is very valuable for people to have open options for moving on -- from relationships as well as living communities. On the other hand, I value genuine heartfelt commitment, where you commit to staying (unless there is unavoidable danger or intolerable hardship in staying). As we become more economically interdependent (as I think we will be as our current economy unravels) we need to recognise as well that moving out is really hard to arrange sometimes. As it was in the old days for women in marriage. I'm not saying go back there, I am saying let's all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment. I happen to believe that this kind of commitment is also very good in the long term for our spiritual growth.", u'entity_id': 22761, u'annotation_id': 7330, u'tag_id': 807, u'entity_type': u'comment'}, {u'quote': u'Today, together with Roberto and Chiara, we keep on improving our devices and iterate on the designs in order to achieve a concept as usable and useful as possible while maximizing customizability and accessibility. Our latest device consists of an exoskeleton with 3 active degrees of freedom for controlling the shoulder abduction/adduction, shoulder flexion/extension and elbow flexion/extension of its wearer.', u'entity_id': 806, u'annotation_id': 7331, u'tag_id': 808, u'entity_type': u'post'}, {u'quote': u'We used the name \u2018Big Bang\u2019 in a symbolic way to highlight the explosion of new ideas and the creation of brand new knowledge from scratch. A new Big Bang of Creation is about to start at Thessaloniki in the following 2 years (2018) hoping that the idea will expand to other Greek cities and abroad. A school where learning is accomplished experientially, in harmony and interaction with the natural environment, aiming to lead children on a wonderful quest.', u'entity_id': 761, u'annotation_id': 7335, u'tag_id': 810, u'entity_type': u'post'}, {u'quote': u"(Common wisdom is that dentistry is very difficult and takes 7 years training, or whatever. I can see why this makes sense. It is very difficult and can get very bad results if it goes wrong, so obviously 'amateurs' should not hack teeth.", u'entity_id': 10261, u'annotation_id': 12582, u'tag_id': 811, u'entity_type': u'comment'}, {u'quote': u'1) Practically, you need what Paul Farmer calls \u201cstaff, stuff, space, systems.\u201d You need expert knowledge. For example, to treat cancer, you need a professionalized cadre, you need certain goods like chemotherapy drugs, etc. All of that won\u2019t be delivered solely through community health workers.', u'entity_id': 564, u'annotation_id': 7340, u'tag_id': 811, u'entity_type': u'post'}, {u'quote': u'We\u2019ve had the good fortune to have many experts in relevant fields reach out to advise us to smooth out our path, but many important questions remain, and the most important ones remain for us to find new answers. Scientists who are reading this \u2013 can we count on you to contribute your expertise in protein expression and purification? Organizers \u2013 can you share with us your vision for expanding these efforts into a movement with participation from parallel groups like ours around the world?', u'entity_id': 552, u'annotation_id': 7339, u'tag_id': 811, u'entity_type': u'post'}, {u'quote': u'They key will be to get lots of people who have experience of working with refugees already, together with lots of people who have useful experience from other areas of life. Then both sides can bounce off each other.', u'entity_id': 13477, u'annotation_id': 7338, u'tag_id': 811, u'entity_type': u'comment'}, {u'quote': u'@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered\xa0 to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it\'s more complicate than it seems. The people want to help but very often the misunderstand\xa0 the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word "crocs" and use the word "clogs" because many people thought I\'m trying to advertise them). Especially for this, a woman from a "...welcome" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn\'t ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it\'s easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it\'s ....hard to explain...', u'entity_id': 11600, u'annotation_id': 7337, u'tag_id': 811, u'entity_type': u'comment'}, {u'quote': u"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )", u'entity_id': 10261, u'annotation_id': 7336, u'tag_id': 811, u'entity_type': u'comment'}, {u'quote': u'Was it due to chance or attributed to treatment?', u'entity_id': 13306, u'annotation_id': 7342, u'tag_id': 812, u'entity_type': u'comment'}, {u'quote': u'Was it due to chance or attributed to treatment?', u'entity_id': 13306, u'annotation_id': 7341, u'tag_id': 812, u'entity_type': u'comment'}, {u'quote': u"To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.", u'entity_id': 846, u'annotation_id': 7343, u'tag_id': 813, u'entity_type': u'post'}, {u'quote': u"I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family\xa0 consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended/alternative families.", u'entity_id': 12379, u'annotation_id': 7346, u'tag_id': 814, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11006, u'annotation_id': 7345, u'tag_id': 814, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 7344, u'tag_id': 814, u'entity_type': u'post'}, {u'quote': u'Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.', u'entity_id': 848, u'annotation_id': 7354, u'tag_id': 817, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 7353, u'tag_id': 817, u'entity_type': u'post'}, {u'quote': u'1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases. \xa0 Beyond the key "theoretical" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.', u'entity_id': 21489, u'annotation_id': 7352, u'tag_id': 817, u'entity_type': u'comment'}, {u'quote': u'I wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and \xa0even spam (as I write this, someone calling themselves "Marcel Enyonam" is offering cheap loans on about ten posts).', u'entity_id': 8193, u'annotation_id': 7351, u'tag_id': 817, u'entity_type': u'comment'}, {u'quote': u'C\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.', u'entity_id': 672, u'annotation_id': 7350, u'tag_id': 817, u'entity_type': u'post'}, {u'quote': u'Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn\'t go to the funeral: it still feels surreal, like she might show up at any time, and the "active" facebook account isn\'t helping.', u'entity_id': 8509, u'annotation_id': 7349, u'tag_id': 817, u'entity_type': u'comment'}, {u'quote': u'I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.', u'entity_id': 548, u'annotation_id': 7348, u'tag_id': 817, u'entity_type': u'post'}, {u'quote': u'I think there is a lot in the medical field which is extremely bad to codify in(to) written language but can be learned face to face. I would think a "social network of people who went through your problems" would be useful particularly in regard to doctor-patient info responsibilities (the doctor is pressed for time and may not be able to relate to a patients situation as well as a "veteran" from the network).\n\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentcare networks\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 20397, u'annotation_id': 12584, u'tag_id': 816, u'entity_type': u'comment'}, {u'quote': u"I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach", u'entity_id': 16180, u'annotation_id': 7355, u'tag_id': 818, u'entity_type': u'comment'}, {u'quote': u'Hey @NADIA\xa0@GEHAN and @NOEMI,\xa0\n\nIn my experience it these circles work very well when the group shares a common willingness to receive, listen, and is open to go into deep experiences. Also what works well is to set a clear invitation and some simple guidelines, such as the ones I described. They help the group process and give a certain structure to build up momentum.\xa0My experiences have been diverse. I\'ve experienced beautiful gatherings where love, depth and understanding were shared among all participants. Sometimes when the group was mixed deeply sharing also lead to some confusion as these depths were not familiar to everyone and not everyone seemed to grasp the depth of the experience of someone else. Although I think it didn\'t harm or shock anyone too much, I do think it may have lead to some confusion. For instance, I once went very deep receiving the talking stick and staying silent for a few minutes, all attention on me, I didn\'t want to "just say something" so I stayed present with my inner dynamics (and doubts) in front of everyone. Finally, I said something that felt true to me. So I remained connected to my inner truth. The woman who was sitting next to me didn\'t know how quick she had to say something when I gave her the talking stick. Ever since our contact between me and the woman have been somewhat weird. Coming to think of it, I should have probably talked to her sometime and exchange perspectives lightly....  (oops).\xa0\n\nThis particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I\'d say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.\xa0\n\nI believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what\'s alive in you at the moment. This worked pretty well.\xa0\n\nI also initiated a circle once during a workshop where people didn\'t really know each other and there wasn\'t a real theme or topic. In that setting it didn\'t feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there\'s always (some) interest), \xa0there wasn\'t really a common intention or relevance to have this talk together. So I wouldn\'t organize a circle "out of the blue" again.\xa0\n\nMost of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it\'s no problem and good examples will follow.\xa0\n\nMost circles I went to lasted for about 1 to 2 hours. Although probably you know about retreats/ satsangs for instance with Bentinho Massaro that take about the whole day (with sessions of about 1,5 to 2 hours each). Have to say that during these days Bentinho (or some other "teacher) is the one who does most of the talking. Yet, he knows how to bring a group into depth. So, even though it\'s a different form, there\'s also huge transformation happening during these meetings.\xa0\n\n@Nadia about organizing this at The Reef. I would say a circle is very appropriate and effective if there is a theme or topic that has great interest. When this is the case, we can do it. You could also guide it yourself if you feel excited.\xa0\n\nAnd is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.\xa0\n\nSo let me summarize my experiences:\xa0\xa0\n\n\nSharing from personal experiences - yet not getting caught up into the story. The aim is to gain clarity to let go of stories and have space te create the new.\xa0\nCircles work well around certain (loaded) theme\'s and communities who work/ life together with a clear invitation.\xa0\nListening from the heart, listening from beyond the personal perspective (not taking anything personal)\nEverything that pops up from a genuine sharing is welcome, even if it\'s off topic. What\'s alive here and now is relevant, provided it serves the conversation & transformation of the whole (including the individual).', u'entity_id': 24534, u'annotation_id': 12586, u'tag_id': 819, u'entity_type': u'comment'}, {u'quote': u"a good host and facilitator who's comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.", u'entity_id': 6401, u'annotation_id': 12585, u'tag_id': 819, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 7360, u'tag_id': 819, u'entity_type': u'post'}, {u'quote': u"I think that's a crux, you said it yourself it's an art. Okay, people can share a lot or a little, but if others are to contribute somehow to understandign things better it means that a facilitator conveys when the conversation can linger\xa0or move on?\xa0I dont think you understand things just by saying them out loud in a group, so you need attention; but for the group it's also important that it stays relevant somehow. No matter how good a listener you are, or..?\nIt seems like quite a fine line, especially if the space is loaded with emotions.\xa0\nEach afternoon and evening we'll have space for self-organised sessions, but a circle of openness would be more organised i think - if you see a topic from the opencare conversations that would work, feel free to propose it. I will be on the lookout too! Big thanks <3", u'entity_id': 24719, u'annotation_id': 7359, u'tag_id': 819, u'entity_type': u'comment'}, {u'quote': u'I have never been part of such a group with such speedy process of opening up - even when deep conversations arise, we had been traversing a sort of coolness, then sociality, then friendliness, and more and more into deeper discussions. That stood for both personal and professional contexts; for both one on one conversations and group conversations.\xa0How do you go through this curve collectively, and\xa0so quickly, is probably really an art.\nAre we talking one day workshops?\nFamiliar faces or strangers?\nAnd how large a group is optimal?\nThanks @ewoudvenema for sharing so generously.', u'entity_id': 21318, u'annotation_id': 7358, u'tag_id': 819, u'entity_type': u'comment'}, {u'quote': u"I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.\xa0\ng", u'entity_id': 16180, u'annotation_id': 7357, u'tag_id': 819, u'entity_type': u'comment'}, {u'quote': u"few times I have been lucky enough to be in this kind of conversation where there was flow. I've always assumed that they happen serendipitously when the stars align somehow- so many different things that are there at the same time. The mood, the sense of being there in a kind of timeless state, the conversation happening for its own sake and not tied to any kind of agenda. Kind of like wandering aimlessly around a beautiful\xa0forest...", u'entity_id': 9251, u'annotation_id': 7356, u'tag_id': 819, u'entity_type': u'comment'}, {u'quote': u'I always recommend a pragmatic approach: what can be learnt from the obstacles and from the conversations collectively held with authorities? In my experience authorities will share many frustrations expressed here about "certifications", however they will describe the system as "the worst, except all the alternatives"... and in facts, what alternatives are there? Laissez faire? Skin the game? Humankind has been there, done that, and it\'s failures that have brought this style of regulation upon us...', u'entity_id': 38810, u'annotation_id': 11839, u'tag_id': 820, u'entity_type': u'comment'}, {u'quote': u'Yet teams often still fail. Where lies the problem? Are we not taking the insight far enough?', u'entity_id': 8124, u'annotation_id': 7361, u'tag_id': 820, u'entity_type': u'comment'}, {u'quote': u'One of the tools to connect those and at the same time to untie ourselves from the banking system is alternative currency networks and FairCoin is already doing this on a global level. However the currency is just a tool, what is most important is the vision and the values that incorporate the efforts. In Thessaloniki, we started quite recently but there is already some places that joined and we hope to see more of them joining very soon. In Greece there is more places in Athens and the island of Crete, where FairCoin is further connected to the local currency of Herakleion. @Noemi you can find a global directory with all the places using FairCoin here.', u'entity_id': 24572, u'annotation_id': 7363, u'tag_id': 821, u'entity_type': u'comment'}, {u'quote': u'In the case of our city, to some extent, it\u2019s done by implementation of alternative cryptocurrency, faircoin, developed by the FairCoop. We try to understand ways in which this currency, and a local currency introduced after the crisis, can coexist and supplement each other. In any case, the goal is to free ourselves from proprietary technologies and capitalist banking systems - by creating a parallel circular model, ideally connecting and supporting a whole ecosystem of projects locally and globally.', u'entity_id': 741, u'annotation_id': 7362, u'tag_id': 821, u'entity_type': u'post'}, {u'quote': u'How to distribute value in a fair way?', u'entity_id': 6439, u'annotation_id': 7364, u'tag_id': 822, u'entity_type': u'post'}, {u'quote': u'However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO\u2019s are \u2018good\u2019, while they don\u2019t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.', u'entity_id': 37182, u'annotation_id': 11785, u'tag_id': 1926, u'entity_type': u'post'}, {u'quote': u'Check this idea\xa0https://www.google.it/url?sa=t&source=web&rct=j&url=http://www.cisjournal.org/journalofcomputing/archive/vol6no1/vol6no1_3.pdf&ved=0ahUKEwiWsJ2qvffQAhUC2BoKHUNyA3cQFghBMAk&usg=AFQjCNGWv8ye9eDz8YbpRoss1KcMGNuXAg&sig2=UbefAdHIiZeESxyUpu6u6A\n\nA great idea of preventing harm when falling', u'entity_id': 17293, u'annotation_id': 12587, u'tag_id': 823, u'entity_type': u'comment'}, {u'quote': u"I can see how calibrating\xa0the accelerometer 's sensitivity would be\xa0a problem. If the purpose is to detect when the wearer falls, would it maybe be better to position it near the centre of mass, rather than on a limb? I am sure you have already thought about it, I am just curious.", u'entity_id': 7159, u'annotation_id': 7366, u'tag_id': 823, u'entity_type': u'comment'}, {u'quote': u'Greetings, so after the successful show in Makerfaire Rome, InPe has been getting ready for testing phase. In our current status our electronics and code, are working with reasonable accuracy, however, we are missing crucial data from testing phase. \xa0We have so far only tested inPe, in very simple ways in order to change the code: \xa0Like holding InPe and throwing it at distance, but would it mean for someone wearing InPe, to shake hands with someone else, to lean on the wall, to walk with a stick or a cane? Would this trigger false alarm? or actually untrigger the alarm when needed? These are questions that we need to answer.', u'entity_id': 6068, u'annotation_id': 7365, u'tag_id': 823, u'entity_type': u'post'}, {u'quote': u'I really enjoyed the game. I am interested in family, and that\u2019s where the care starts. Some people are now looking into chosen families \u2013 me too, as long as I have increased access to travel. But it feels weird to ask for health to chosen families, people who are not blood. Maybe that\u2019s old fashioned of me. But I would like to talk about family. Also: are we creating a kind of tyranny of reputation scores, a kind of God of judges us on the basis of our digitally encoded accomplishments?\n\n\nDenise:', u'entity_id': 38811, u'annotation_id': 11754, u'tag_id': 824, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 7387, u'tag_id': 824, u'entity_type': u'post'}, {u'quote': u'The ones who do, and take on a role in the family that I think is more like the model Alkasem describes, seem pretty happy though. \xa0I admire it.', u'entity_id': 21579, u'annotation_id': 7386, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u'me I think the issue is more simple , in the middle east we say we live in a big families because it is more warm , inherited consensus make it so easy , trust me , in Syria I never worried about what I,m gonna eat , who,s I,m gonna spend time with ( because of the agenda of duties for people , neighbours , family ) , I started to wonder about that only in europe', u'entity_id': 18095, u'annotation_id': 7385, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 21867, u'annotation_id': 7384, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19788, u'annotation_id': 7383, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u'Anyway, my point is that before that time people did have families, and they did not feel particularly flaky, quite the contrary. So I would submit that the perceived stability of a familial arrangement has little to do with home ownership. Maybe an important factor is, rather, the rigidity of the agreement that binds it members together: practically indestructible in the case of parent-to-offspring, solid but less committal in\xa0 that of sibling-to-sibling, more instable in that of life partner-to-life partner, and even more in that of the housemate-to-housemate.', u'entity_id': 19317, u'annotation_id': 7382, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u"I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family\xa0 consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended/alternative families.", u'entity_id': 12379, u'annotation_id': 7381, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u'Is is based on friends or ...more than one life partner...or young people only ? I am really curios to learn & know !', u'entity_id': 7492, u'annotation_id': 7380, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 7379, u'tag_id': 824, u'entity_type': u'post'}, {u'quote': u'Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.', u'entity_id': 7673, u'annotation_id': 7369, u'tag_id': 824, u'entity_type': u'comment'}, {u'quote': u"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land.\xa0http://www.phoenixconnections.net", u'entity_id': 571, u'annotation_id': 7388, u'tag_id': 825, u'entity_type': u'post'}, {u'quote': u'Under these conditions the best thing you can get to is the Egyptian model, with hungry ignorant people afraid to be like those in Syria or Iraq, governed by fascist goverments.', u'entity_id': 797, u'annotation_id': 7389, u'tag_id': 826, u'entity_type': u'post'}, {u'quote': u'You \xa0are well informed, yes\xa0young people were in the streets, dissatisfied with the elections but they got tired and gave up,\xa0it is easier to simply go somewhere abroad, looking for a job, although it is not easy,(\xa0language,habits, traditions, family, friends, problem with visas, work permits.... ) than\xa0to stay and fight,\xa0brain drain is\xa0huge issue.', u'entity_id': 11895, u'annotation_id': 7391, u'tag_id': 827, u'entity_type': u'comment'}, {u'quote': u'That Christmas my health deteriorated and I acquired glandular fever. After a short hospital stay I returned home to suffer months of crippling fatigue. I have battled with severe fatigue ever since.\xa0 I was ill for most of that year and was idle until I won a place in Information Technology in the University in Galway. Even though I was living at home I was very happy to attend this course. I found this University more relaxed and got on very well with my classmates. For some reason I suffered a breakdown during my final term of my degree. I didn\u2019t tell friends or family but had meetings with some of the lecturers to see could I postpone my final exams.', u'entity_id': 562, u'annotation_id': 7390, u'tag_id': 827, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 663, u'annotation_id': 12589, u'tag_id': 828, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 669, u'annotation_id': 12591, u'tag_id': 2054, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11090, u'annotation_id': 7399, u'tag_id': 2054, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 7398, u'tag_id': 2054, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22106, u'annotation_id': 7400, u'tag_id': 830, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 7402, u'tag_id': 832, u'entity_type': u'post'}, {u'quote': u"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices \xa0and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing \xa0plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that \xa0expose girls and women to violence \xa0and \xa0HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com\nI will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.\nWith Personal Warm Regards", u'entity_id': 24949, u'annotation_id': 7404, u'tag_id': 833, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 24411, u'annotation_id': 7403, u'tag_id': 833, u'entity_type': u'comment'}, {u'quote': u'Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries.\xa0Communities will be taught how\xa0to make the\xa0filter and the purification drops - made from\xa0clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.\xa0\xa0\n\nInteresting read:\xa0http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet\n\n\n\nAccess to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world\u2019s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop.\n\nThe MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source.\n\nThe MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa.\n\nThe impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.', u'entity_id': 710, u'annotation_id': 12592, u'tag_id': 836, u'entity_type': u'post'}, {u'quote': u'@Noemi Yes, send the invitation, appreciate it. \xa0As far as this initiative, I read an article from an Environmental Engineer that was in collaboration with the University of Venda- I felt it was a fantastic initiative considering that water-related\xa0diseases kill thousands every year. \xa0Just thought it was worth sharing.\nHowever, I did read that the initiative developed substantially in the past few years. I read that they opened up two facilities in South Africa. \xa0This is as of 2016, the facility produces clay water pots infused with silver particles to disinfect the water \u2013 and provides employment for the locals\xa0and is an excellent small business model for community entrepreneurs.', u'entity_id': 15020, u'annotation_id': 7408, u'tag_id': 836, u'entity_type': u'comment'}, {u'quote': u'Where:\nBarcelona, Spain\nWhen:\xa02014\nWho:\xa0Mauricio Cordova\nFew lines description:\n\n\nIs it a device / software / service\n \n\nFairCap is a device produced with open source technologies.\n\xa0\n\n\nType of community involved (elders, deaf/blind/autism\u2026 disability, etc)\n \n\nThe project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don\u2019t have access to drinkable water and therefore are characterized by premature deaths due to this reason.\n\xa0\n\n\nHow big is the community involved\n \n\nWhat is the solution proposed\n\n \n How is the project currently affecting users\u2019 life?\n  \n\n\n\nFairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users\u2019s life.\n\xa0\n\n\nIs the project developed or still in the development phase?\n \n\nThe project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$.\n\n\nAre there similar projects or attempts to solve the same problem?\n \n\nThere are several: SolarBag \xae (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)\n\xa0\nWhy:\n\n\nHow is it open?\n\n \n What kind of license did they use to publish it? (links to documentation/repo are welcome)\n  \n\n\n\nFairCup is completely open source, available to download and released under Creative Commons licence.\n\n\n\n \n Can you clone/fork it?\n  \n\n\n\nYes\n\n\n\n \n Is it freely available?\n  \n\n\n\nThe source files are downloadable for free\n\n\n\n \n Is it affordable? (please compare)\n  \n\n\n\nThe estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters.\n\n\n\n \n Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?)\n  \n\n\n\nThe founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.\n\xa0\n\n\nHow does it \u201ccare\u201d?\n\n \n Does it solve a medical issue?\n  \n \n Does it solve a social issue?\n  \n \n Does it solve an everyday issue for a specific (disadvantaged) community? \n  \n\n\n\nYes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.\n\xa0\nLink: http://faircap.org/\nhttp://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/', u'entity_id': 33728, u'annotation_id': 7407, u'tag_id': 836, u'entity_type': u'post'}, {u'quote': u'Prinzessinnengarten, as well as other urban gardens in Germany, have been able to develop small economies around its activities. Prinzessinnengarten has been able to support 15 full-time jobs during it seasons, being financially independent through its economic activities such as horticulture, the tending of a small caf\xe9, selling its products, as well as giving training in gardening, ecology or the planning of further gardens. At the same time, it has been able to offer high quality, healthy and ecological food at affordable prices.', u'entity_id': 507, u'annotation_id': 7410, u'tag_id': 838, u'entity_type': u'post'}, {u'quote': u"or me, seeing you guys at work it's been highly rewarding: fairly technical projects requiring hard skills are\xa0crossing over to ask fuller questions re: sustainability whose answers can only become a common resource for those of us struggling with the same.\n@breathinggames the four obstacles lined up above are something to include in your session description I believe - for the discussion after.", u'entity_id': 7127, u'annotation_id': 7413, u'tag_id': 839, u'entity_type': u'comment'}, {u'quote': u'Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?', u'entity_id': 6459, u'annotation_id': 7412, u'tag_id': 839, u'entity_type': u'post'}, {u'quote': u'And shifting to the right in practice for us meant\xa0developing sustainable financial models.\nLargely in two ways: commodifying what came out of our own chaos and getting paid to invent new things for other people (creating some chaos in their world).', u'entity_id': 19057, u'annotation_id': 7411, u'tag_id': 839, u'entity_type': u'comment'}, {u'quote': u'This may sound obvious, but I guess one main approach is to find some point in common. Yes, the two people may come from completely different backgrounds, but there are so many aspects to life that, if we look at enough areas of life, it is extremely unlikely that nothing at all is shared.\n\nAlternatively, try exploring questions which mean a lot to almost everyone. See e.g. https://www.indy100.com/article/the-36-questions-to-ask-that-will-make-anyone-fall-in-love-with-you--gJVkNnfRcg\n\nSee what happened to one person trying this out in this TED talk...', u'entity_id': 26013, u'annotation_id': 12686, u'tag_id': 840, u'entity_type': u'comment'}, {u'quote': u'Well collaboration, is a term within it which includes a large field of understanding the term itself. @Yannick we were used to hear the word "Crowd of sheeps" which was a very powerfull intrigue to make people become more selfish and viewing from the wrong corner has made them to feel and get separated, so that the word collaboration was mistaken with a conspiracy word "Crowd of sheeps". It has nothing similar in this two words and i wuld like to concetrate more on the collaborative ways and methods.\n\nThe collaboration itself, should begin as an inner movement and will, to enlight you within you and make you spread your aura with other people around you, startin from your home where you live, your school or college, your working place, your company or your weekends house neighbours.\xa0\nYou should concentrate on the connections to every each person neat you, and try to connect them with your inner will and try to transmit the message also with your aura. Start learning new things, start leraning new cultures and characters.\xa0\nMaking compliments and new friendships is the best way, to explore each others mind and ideas, collecting mutual interests and creating fellowships and spreading the collaboration breath.\n\nI am more spiritually bounded to this idea, because I am also a very social person and the topic was bolded for me as i readed it, and I hope you will endure the way.\xa0\n\nWish you all the best...', u'entity_id': 33761, u'annotation_id': 7415, u'tag_id': 840, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 7414, u'tag_id': 840, u'entity_type': u'post'}, {u'quote': u"For the research part, I thought the only way to actually know what is going on would be to go to places where health care is needed, and talk to people first hand. Get a feel for their situation. (Rather that trusting info sources from others). So I think we could get people to visit anywhere that seems like it might lack good health care and talk to people in need, and the people giving the care. e.g. Refugee camps, impoverished inner city areas where there are too many people and not enough doctors / hospitals. Rural areas where it's hard for people to get health care. Go to places, talk to people get first hand accounts, do surveys and get numbers.", u'entity_id': 10261, u'annotation_id': 7418, u'tag_id': 842, u'entity_type': u'comment'}, {u'quote': u'An obvious path towards achieiving impact is to find, acknowledge and draw support towards people who already are doing important work.', u'entity_id': 5463, u'annotation_id': 7417, u'tag_id': 842, u'entity_type': u'post'}, {u'quote': u'We need raw data about how the healthcare situation is currently being managed, but from first hand sources...ie go out and ask people on the ground. How many doctors, nurses and others are currently active in caring for the new arrivals? Where are the resources coming from, is it mainly charities? Is this information already out there and is anyone aggregating information about the different intiatives providing care services to people?', u'entity_id': 5463, u'annotation_id': 7416, u'tag_id': 842, u'entity_type': u'post'}, {u'quote': u"One thing we've taken to doing, in order to give a space for the range of views and thoughts\xa0on these topics is we hold semesterly fishbowl discussions. Possibly your community could benefit from adopting this format as one of its\xa0methods for exploring issues that arise.", u'entity_id': 8009, u'annotation_id': 7419, u'tag_id': 843, u'entity_type': u'comment'}, {u'quote': u"I hope you will get the touring exhibition to have a european leg, and come through Lausanne! \xa0To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help!\n\nI left a comment with a few points this morning on the page with\xa0the documentary, but just to ask one more silly question: was it\xa0actually possible to do any fly-fishing on the Bagmati river?? \xa0(are there many fish to catch?? \xa0are they edible?) \xa0\n\nI did some flyfishing long ago in the great northwest and Montana, with great pleasure, but\xa0don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)...\n\nThanks again for sharing, and looking forward to further discussions!", u'entity_id': 21501, u'annotation_id': 12687, u'tag_id': 844, u'entity_type': u'comment'}, {u'quote': u'There are two streams in Brussels that might be a better stream to investigate than the Seine:Maalbeek,and Woluwe as well as several ponds.\nThere seems to be fishing opportunities in Brussels in Laeken: (lespecheurslaekenois.com/ind...\xa0) and outside of Brussels in Wallonia (peche.tourisme.wallonie.be/p...).\nIt might be good to partner with Michieles Fishing Center in Brussels and other organizations mentioned in angloinfo.com for more specific assistance finding bodies if water to investigate including water quality\xa0and fly fish.', u'entity_id': 29539, u'annotation_id': 7424, u'tag_id': 844, u'entity_type': u'comment'}, {u'quote': u'I think it would be great to work with schools and underserved kids! Fly fishing is based on using flies that duplicate the insects and bait fish found in bodies of water. By understanding and looking at the fauna found in local streams and by discussing the fragility of that environment, student can make connections between their actions and how government and industrial actions affect their local bodies of water. It is important to make a connection between the students and their environment. This can be done by simply walking into a stream and turning over some rocks to see what is clinging to it.\nfly casting and tying flies are other activities that can be done to connect to this. There is a Royal Casting Club in Brussels plus other organizations that\xa0could help us with these activities.\nMore activities is also possible to link to other schools through Zoom and Hangout.', u'entity_id': 28454, u'annotation_id': 7423, u'tag_id': 844, u'entity_type': u'comment'}, {u'quote': u'As I mentioned, we provide a three day conference here in the States called "Children in the Stream Conference" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to "hook" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young\xa0 age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here\'s an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).', u'entity_id': 26938, u'annotation_id': 7422, u'tag_id': 844, u'entity_type': u'comment'}, {u'quote': u'Alberto: mentions flyfishing education inserted as an activity in an edu program in the US. Relevant for Damiano, Winnie, ... can be shared for OpenVillage?', u'entity_id': 6372, u'annotation_id': 7421, u'tag_id': 844, u'entity_type': u'post'}, {u'quote': u'For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example.\nFly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments.\nWe will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings.\nThe session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms).\nAs the group will be diverse and there are multiple things to do, we\u2019ll work with a rotation, so that everyone gets to do a little of everything.\nThe session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website.\nWhat we still need for the session:\n\nPeople with fishing experience to teach casting techniques\nPeople who want to facilitate the citizen science experiments\nFishing rods and reels to borrow\nHelp with online presence\n\nAn issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!', u'entity_id': 6429, u'annotation_id': 7420, u'tag_id': 844, u'entity_type': u'post'}, {u'quote': u'A\xa0final point: a flat organisation has leaders of its own, even informal\xa0- I can\'t imagine not having leaders, even multiple ones,\xa0giving direction to the org.\xa0Don\'t you have them in your large group Yannick?\xa0Falkwinge,\xa0who wrote about making great ideas happen with many people contributing, was saying that managing\xa0day to day operations require\xa0"one portion classic\xa0project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm\u2019s goals, culture, and values as it grows." OK, his Pirate Party\xa0was\xa0a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills\xa0distrbuted within the leadership may help the general organisation and support others to fall into specific roles..', u'entity_id': 15147, u'annotation_id': 7427, u'tag_id': 845, u'entity_type': u'comment'}, {u'quote': u'Modern organizations, starting as a local and small group of people tend to go fast in an horizontal or flat organization structure. People are seen as equal and every role is important, it helps to feel involved, and makes the range of possibilities bigger. But without a leader the group misses sometimes direction and efficiency is less visible. Roles are then distributed and somebody becomes head of design, head of funds or head of communication. Productivity is flowing again, but for me a subtler barrier is still in the way. From idea to task you still need preparation, and that is something I\u2019m completely lacking of.', u'entity_id': 785, u'annotation_id': 7426, u'tag_id': 845, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 7425, u'tag_id': 845, u'entity_type': u'post'}, {u'quote': u'working with at talking to poeple about barriers. not being able to get the time off of work. not being allowed to take 4 weeks at once is very common. Even when they would be developing useful transferable skills.\nchronic embitterment within organisations that seem incohernent.\nthis has been a big issue in the NHS. there is a large intrest in opencare from medical professionals. addressing its internal issues or just giving greater flexibility to the staff would give staff the head space for other projects of intrest.', u'entity_id': 6685, u'annotation_id': 7428, u'tag_id': 846, u'entity_type': u'comment'}, {u'quote': u'Hey, I now think this post may have slipped attention because it doesn\'t have "boat clinics" in its title!\nThanks for getting the story, Natalia. I find it meaningful that while it was one small idea in the beginning, it has evolved into a public program due to involvement of district administration, WB and UNICEF - all of which helped it scale and work out a run-of-the-mill approach.\nI found this telling quote by a gov employee: "The government has the resources and the mandate to create a thousand Ships of Hope that will bring health to people who are at the receiving end of a highly volatile and moody river. We need the\xa0 humility and the willingness to learn from those who know better"', u'entity_id': 7189, u'annotation_id': 7430, u'tag_id': 847, u'entity_type': u'comment'}, {u'quote': u'There\u2019s not much focus on Asia in our research - therefore, I\u2019d like to present you some inspiring initiatives from India and Nepal, which present a very different approach to delivering care: actually delivering it.\nFirst, of them is MV Akha, a floating clinic that travels along Brahmaputra Netri to the inhabitants of the saporis/the islands. One look at the map of the region is enough to understand how difficult for them it would be to access hospitals and doctors otherwise. 2500 islands sit on the Indian part of the river, which starts from the Tibetan mountains and flows through the Assam region, being a home to 3 million people, 10% of the region\u2019s population.\nThere are numerous reasons why providing these places with health care is particularly difficult: due to huge shortages of doctors in India to start with (0.7 per 1000 people), shifting territories of these islands, unstable population and difficult living conditions: they\u2019re connected to the land by boats and suffer from frequent energy and drinking water deficit. Not to mention strikingly high numbers in maternal and infant mortality.\nSanjoy Hazarika pitched the idea of floating clinics to the World Bank in 2000 and received their support - 20,000 dollars to start with. One year later the first boat sailed to bring care to the Assamese, and until today, 14 more followed. The project was eventually joined by the state, which established a public-private partnership with the trust and started funding the offered service. Each month around 20.000 people in total are reached by these facilities.\nSome of the doctors who joined the ships helped to improve their service. One of the keys to success is frequency - by ensuring that each island is visited at least once a month it is possible to take good care of immunization and condition of pregnant women. They also bring the basic medicine, which is cheap in India - but if one needs to hire a boat to get it, the costs soar.\nAnd the service provided by the boat is free - the funds provided by the state amount for 72 400 000 million rupees per year - which, after covering the costs of the boat and the staff, means that there are 480 rupees per person left. Around 5 dollars per year.\nMore about the project here: http://www.c-nes.org/programmes/boat-clinics\nPhoto comes from\xa0http://www.tehelka.com/2014/07/boat-clinics-provide-healthcare-to-3-million-people-in-assams-river-islands/', u'entity_id': 708, u'annotation_id': 7429, u'tag_id': 847, u'entity_type': u'post'}, {u'quote': u'In 2010 Pakistan was subjected to overwhelming floods which wreaked havoc in the country. More than 20 million people and over 650,000 houses were at the receiving end of this destruction as per Pakistan\u2019s National Disaster Management Authority (NDMA) report. The province of Punjab was greatly affected, the district of Layyah, in Southern Punjabin particular. Rivers of this region overflowed due to the enormous downpour and 15 union councils (UCs) of Layyah were devastated.\xa0\nIn order to reduce the suffering of people from diseases and hunger, a program was developed to\xa0promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled \u2018Rapid Livelihoods Rebuilding via Agriculture & Health\xa0based Livelihood initiatives\u2019 (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to\xa0reconstruct\xa0livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by\xa0flooding.\nOBJECTIVES\xa0\n\nImprovement of livelihood through sustainable agricultural \xa0practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan.\n\nTo establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.\n \nCapacity building\xa0through\xa0provision of trainings and inputs for sustainable development of the flood effected people.\nTo establish local governance through local\xa0economic development\xa0and implementation of project in partnership with local government stakeholders and village-based institutions.\n\nProject implementaion and stratigies\n\n\xa0\xa0Recruitment of staff\n\xa0\xa0Selection of target area\n\xa0 Baseline survey\n\xa0 Orientation & coordination meeting with stakeholders\n\xa0 Formation of community based organizations (CBOs)\n\xa0 Capacity building of CBOs\n\xa0 \xa0Beneficiaries\u2019 identification with the help of CBOs\n\xa0 \xa0Demo plots establishment\n\xa0 \xa0Technical skill enhancement of beneficiaries in kitchen gardening and fodder\n\xa0 \xa0 Agricultural inputs\u2019 distribution\n\xa0 \xa0 Health services and provision of medicines\xa0\n\xa0 \xa0 Evaluation of project\n\xa0 \xa0 Continuous follow up.\n\xa0 \xa0 Continuous monitoring of project\n\nProject Targets\n\n40 CBOs\n40 Demo plots\n10 Rural helath centers\xa0\n20 persons were trained in emergencies handling and care\n10 First aid voulnteers were trained on each localities\xa0\n1400 Persons trained (700 beneficiaries trained in kitchen gardening (70% females) & 700 beneficiaries trained in fodder/vegetable plots)\nDistribution of 700 seeds and 700 tool-kits\xa0\n\nProgress Summary\xa0\nThe main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation.\nAlthough we have started this project in July 2012 with limited team but we have achieved majority targets of project in the short period of time that\xa0\xa0not only show the better planning of project but showed the excellent participation of CBOs and community also.\nCntribution is needed now more than ever to ensure livelihood of the farmers with\xa0 Program continues to serve those in most need. ( Farmers expections)', u'entity_id': 855, u'annotation_id': 7431, u'tag_id': 848, u'entity_type': u'post'}, {u'quote': u'And is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.', u'entity_id': 24534, u'annotation_id': 7434, u'tag_id': 849, u'entity_type': u'comment'}, {u'quote': u"I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.", u'entity_id': 16180, u'annotation_id': 7433, u'tag_id': 849, u'entity_type': u'comment'}, {u'quote': u"few times I have been lucky enough to be in this kind of conversation where there was flow. I've always assumed that they happen serendipitously when the stars align somehow- so many different things that are there at the same time. The mood, the sense of being there in a kind of timeless state, the conversation happening for its own sake and not tied to any kind of agenda. Kind of like wandering aimlessly around a beautiful\xa0forest...", u'entity_id': 9251, u'annotation_id': 7432, u'tag_id': 849, u'entity_type': u'comment'}, {u'quote': u'There are many people around now, many machines and tables too; there is not a fixed way to deal with spaces. At least, functionality and results make spaces lived by people and changed time to time. Some machines are heavy, but I have seen the 3D printers and other stuff moved easily from one side of the place to the other, or more tables mounted for the newcomers in few minutes. There are also many classes and participants around; so many tables, activities, computers, cables and..of course, people. There is a heterogeneity at work that makes such peculiar activities possible;\xa0 half way instructional, half way productive. When it comes to prototyping, mocking-up, or discussing how to define something that is not standard, or mass produced, there is an involvement on different levels and by different actors. It reminds more of a home life than a factory; there are no written rules about how to deal with spaces and home rules as well, as far as I have understood. Anyway everything seems very well organised and scheduled: MIR guests arrived yesterday, but had already two classes: one about AGILE approach by @alessandro_contini and one about Github by @Costantino .\n\nIt is important that everybody here uses and delivers contents using the same tools and integrating to others within the bigger tasks. Me too, i had to live this "rite of passage".\n\nThere are two considerations now. First, big changes in constituted order of space may bring changes in the way work is organised. Second, there is not a better way than changing the program, or modifying the shopfloor, to see how people react and enact in other ways, de-routinizing the ethnomethods shared at WeMake and whoever may access its social world.', u'entity_id': 864, u'annotation_id': 12688, u'tag_id': 2060, u'entity_type': u'post'}, {u'quote': u'here have been many changes during the last week...\nCaracol, a designer studio, moved its big 3D printers out the building and left an empty big room at the upper floor. Yesterday, the designers of ResCure arrived, the first group "in residence" that will live here till june 25th and accelerate their project thanks to WeMake know-how and its shared spaces.', u'entity_id': 864, u'annotation_id': 7435, u'tag_id': 2060, u'entity_type': u'post'}, {u'quote': u"Hi @Lucy , welcome on the platform!\nFor this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together.\nWe should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?", u'entity_id': 20342, u'annotation_id': 7437, u'tag_id': 851, u'entity_type': u'comment'}, {u'quote': u'The trap is what to me is\xa0a deadly combination: a lot of flexibility and many roles to choose from, on one hand,\xa0and being a generalist\xa0.on the other hand. These two can sometimes get you to drift off and not focus on one area at a time -> hence some extra\xa0messiness in a flat organisation, as prompted by @Yannick.', u'entity_id': 25125, u'annotation_id': 7436, u'tag_id': 851, u'entity_type': u'comment'}, {u'quote': u'I am not expert with that but I believe that diet wise in rural areas in Egypt is better than the one in cities, however, the unhygienic environment and non-clean water affect their health causing disease like diarrhea and vomiting reflect later on their nutrition state.\n              \n  \n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 38835, u'annotation_id': 11851, u'tag_id': 852, u'entity_type': u'comment'}, {u'quote': u"-- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.", u'entity_id': 25790, u'annotation_id': 7443, u'tag_id': 852, u'entity_type': u'comment'}, {u'quote': u'In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:\xa0\nCarrots, Broccoli, Fennel = Low Histamine\nTomato, Orange, Kiwi = High Histamine\nCoffe, Garlic, Grapes =\xa0sometimes tolerated\nThis are informations\xa0that\xa0anyone can find online but while at the supermarket or while choosing\xa0your ice cream flavour, it is handy to have it quickly ready all together in an app.', u'entity_id': 20905, u'annotation_id': 7442, u'tag_id': 852, u'entity_type': u'comment'}, {u'quote': u'Tutto \xe8 nato da una nostra esperienza\nMonica: \u201cNicoletta? Andiamo a mangiare una pizza?\u201d\xa0\nNicoletta: \u201cCerto! Prenoto per due al solito posto dove puoi mangiare anche tu?\u201d\xa0\nM.\u201cOk!\u201d.\nRistoratore: \u201cBuona sera Signore, avete prenotato?\u201d\nN. \u201cS\xec, per due; nome Nicoletta\u201d. -\nEccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l\u2019ordine.\xa0\nN.\u201cPer me una prosciutto e funghi\u201d\nM. \u201cIo invece..premetto: sono intollerante al glutine e al lattosio...\u201d il cameriere annuisce \u201c...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...\u201d\nC.\u201cS\xec signora\u201d\xa0\nM.\u201dBene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini\u201d\nC. \u201cDa bere?\u201d\nN. \u201dUna birra per me!\u201d\nC.\u201dE lei?\u201d\nM.\u201dIo? Che cosa posso bere che non sia acqua?\u201d\nC.\u201dAbbiamo due birre senza glutine\u201d\nM.\u201dQuali?\u201d\nC.\u201dLa Daura e la Peroni\u201d.\nGiro lo sguardo verso Nicoletta con un\u2019espressione rassegnata e penso \u201d...sempre quelle...\u201d\nPassano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca \xe9 terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame per\xf2 e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - \u201cChiss\xe0\u201d.\nArriva la pizza e a quel punto, mi assale lo sconforto pi\xf9 profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia...\nNon ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio!\nN. \u201cMonica? Mi fai assaggiare?\u201d\nM.\u201dCerto!\u201d\nN.\u201d...Mmm...il sapore non \xe8 male ma questa non \xe8 una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. \xc8 proprio triste...\u201d\xa0\nM.\u201c...Gi\xe0...\u201d\n---------------------------------\nQuesta serata per Monica e Nicoletta non \xe8 stata l\u2019unica; altre l\u2019avevano preceduta e altre ancora ne seguirono.\nAd ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso:\n\nMonica elenca ad alta voce al cameriere le sue intolleranze,\xa0\nil cameriere annuisce puntualmente,\xa0\nMonica\xa0 si barcamena nella lettura di menu labirintici (a volte privi dell\u2019elenco degli allergeni)\ndalla cucina arriva l\u2019avviso che l\u2019alimento richiesto non \xe8 disponibile\nMonica si accontenta di \u201cci\xf2 che propone la cucina\u201d nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori\n\n\nE in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All\u2019interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.\xa0 \xa0\nQui in allegato la pizza di Monica', u'entity_id': 824, u'annotation_id': 7441, u'tag_id': 852, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 834, u'annotation_id': 7440, u'tag_id': 852, u'entity_type': u'post'}, {u'quote': u'In the capacity of co-facilitator I am working together with Christabel Buchanan -from the Coventry Centre for Agroecology Water and Resilience, on \u2018Real Food Utopias\u2019: an action research project mapping and tracking alternative food systems and economies in and around Thessaloniki. We made an open call inviting individuals from a variety of formal and informal groups. Through this process we came up collectively with a series of themes to be further explored. We then held training sessions on participatory video-making (from story boarding to collective editing) and then formed working groups for each theme. Then we organise public showings to get feedback and to instigate discussion and hopefully action by community members -like the creation of a Food Policy Council', u'entity_id': 560, u'annotation_id': 7439, u'tag_id': 852, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 7438, u'tag_id': 852, u'entity_type': u'post'}, {u'quote': u"over a coffee and she shared with me the motivation behind their initiative.    Carry Hendrix & Denise Sliepen (pictured above)\n\nA Recollection- I asked a few questions and this was the result of our conversation.\n\n\u201cAfter meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer\u201d.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers\u201d.\n\nWe both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began\u201d.\n\nWhat prompted the action?  \u201cWe wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else.  We all could learn from one another.  So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other\u201d. \n\nWhat is the mission of CoreCareCollective? \u201cOur mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person\u2019s cancer fight: the survivors, fighters, supporters, and caregivers\u201d. \n\n\u201cEvery person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey\u201d. \n\nI had asked who else would be in collaboration, this was her response, and \u201cThe platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system\u201d.  \n\nWho do you want to reach? \u201cPeople around the world that want to share their experiences and sharing their strength\u201d. \n\nDenise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more.\n\nIt is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare.\n\nI should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentstory sharing\n  \n    \n    Edit\n    Delete\n  \nNo Commentlearning spaces\n\n  \n    \n      Cancel\nSave\n    \n    \n  \nAnnotate", u'entity_id': 35903, u'annotation_id': 11598, u'tag_id': 2061, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 7464, u'tag_id': 2061, u'entity_type': u'post'}, {u'quote': u"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !?\nOnce I searched medline (a database of scientific publications) \xa0to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' .\nCan it really be that there is a enormous hole in healthcare research here?\nCould it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?", u'entity_id': 24439, u'annotation_id': 7463, u'tag_id': 2061, u'entity_type': u'comment'}, {u'quote': u'Hi @Denise Carry, I think it is important to also focus on the important of digestion/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced/consumed). This is often forgotten (way too often, I\'m afraid), even by most "food fanatics" or "health hypers", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food. Taking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas. How connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?', u'entity_id': 20297, u'annotation_id': 7462, u'tag_id': 2061, u'entity_type': u'comment'}, {u'quote': u'As long as I remember we have been told to eat healthy /\xa0As long as I remember hospital food has had the reputation of being awful\nAs long as I have been having my lunches in a hospital I\u2019ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc.\nAs long as I have been having my lunches in a hospital the\xa0meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit.\nSo starting at the hospital we are told one thing and given the opposite.\nThe logical conclusion is that change should start at the hospital. It same goes for\xa0schools down to kindergardens.', u'entity_id': 11833, u'annotation_id': 7461, u'tag_id': 2061, u'entity_type': u'comment'}, {u'quote': u'This makes a ton of sense. Everyone says that sport and healthy food are good for non-sick people: they should be even more important for people who are sick! I, too, lead\xa0a reasonably healthy lifestyle. I do not have cancer now, but \u2013 realistically \u2013 I will at some point. And I will want the same kind of advice that you also looked for.\xa0\nI would totally support this idea! @markomanka , you are a doctor. Any thoughts?', u'entity_id': 9737, u'annotation_id': 7460, u'tag_id': 2061, u'entity_type': u'comment'}, {u'quote': u'In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising.\nAt home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape?\nThrough the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase).\nThe information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight.\nCurrently there are all kinds of \u2018food fanatics\u2019 and \u2018health hypes\u2019. We are convinced that healthy food should not be a trend. We don\u2019t want to focus on trends or hypes; our focus lies at informing people about healthy food and \u201cback to basic\u201d. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don\u2019t have enough time to guide a patient in the best way and many dieticians follow the \u2018old\u2019 rules and are promoting the medical food of the pharmaceutics industry.\nWe want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu\u2019s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy.\nNext to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.\nFiguring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects.\nChallenge\n(Customized) advice serving cancer patients during treatment (chemo, radiation,\u2026) to ensure optimal nutrition and exercise.\n\nfocusing on natural instead of artificially produced ingredients\nemphasizing the importance of regular and moderately intensive exercise.\n\nChannels\nShort-term: online (info and community)\nLong-term: face to face (workshops on two main subjects)\nActivities:\n\ndevelop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc.,\ncontact points in the Netherlands on sports coaches to contact for guidance,\nset up sports projects and readings about healthy food and sports for cancer patients,\ncreate communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don\u2019t have a partner.\n\nType of community involved\nCommunity consists of cancer patients (no age restrictions or type of cancer)\nSolution proposed; effect on users life?\nEnsure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.\n\xa0\nHow is it open?\nIt is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)\n\xa0\nHow does it \u2018care\u2019?\nThis platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects \u201chealthy nutrition\u201d and \u201cexercise\u201d. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.', u'entity_id': 711, u'annotation_id': 7459, u'tag_id': 2061, u'entity_type': u'post'}, {u'quote': u"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called \u201cReal Food Utopia\u201d as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts).\nThe workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it.\nI am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad.\nI am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.\xa0 I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains.\nWe would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects.\nWe are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an \u201cumbrella\u201d project which consists of several innovative schemes.\nThe main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece\u2019s rural areas and promote an economy that is based on social solidarity and alternative currencies.\nWhat we have in mind is summarized in the following fields of action:\n\n\nExporting network of agricultural products in Northern Europe (especially citrus, olive oil and \u201cugly\u201d fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices.\n \n\nPromotion of food security and food sovereignty in Greece.\n \n\nRespond to the mainstream challenges by using our ingenuity and creativity for social \u2013nonpersonal- benefits.\n \n\nReduce food waste promoting \u201cugly\u201d fruits and vegetables focusing on good quality.\n \n\nBoost local economies and offer technical support to Community Supported Agriculture schemes.\n \n\nCreation of an official Greek hub for non formal groups working on food sovereignty that lack financial support.\n \n\nSaving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership.\n \nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group.", u'entity_id': 750, u'annotation_id': 7458, u'tag_id': 2061, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 27791, u'annotation_id': 7457, u'tag_id': 2061, u'entity_type': u'comment'}, {u'quote': u"users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it's a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing.", u'entity_id': 837, u'annotation_id': 7465, u'tag_id': 854, u'entity_type': u'post'}, {u'quote': u'food distribution', u'entity_id': 39328, u'annotation_id': 11663, u'tag_id': 855, u'entity_type': u'post'}, {u'quote': u'Hi @Denise Carry, I think it is important to also focus on the important of digestion/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced/consumed). This is often forgotten (way too often, I\'m afraid), even by most "food fanatics" or "health hypers", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food. Taking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas. How connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?', u'entity_id': 20297, u'annotation_id': 7467, u'tag_id': 855, u'entity_type': u'comment'}, {u'quote': u'The building of a network of alternative economy is being supported by FairCoop on a global level, and in the area of Thessaloniki it seems to be of special value as it can be directed to service needs of refugees. It is certainly not an easy task to achieve and it requires a lot of networking and cooperation, but already a cooperative store and collectives of producers are participating, while there is interest and plans for more to join very soon. What is also very important is that the cooperative stores participating in this network distribute high quality food products, produced by fellow cooperatives in Greece or imported through fair trade distributions channels.', u'entity_id': 792, u'annotation_id': 7466, u'tag_id': 855, u'entity_type': u'post'}, {u'quote': u'hot food distribution, dry food goods distribution', u'entity_id': 39328, u'annotation_id': 11625, u'tag_id': 856, u'entity_type': u'post'}, {u'quote': u'Food Security for All .......\n1- Training\xa0\n2- Capacity Building\xa0\n3- Open Discussion', u'entity_id': 6369, u'annotation_id': 7470, u'tag_id': 856, u'entity_type': u'post'}, {u'quote': u"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization\xa0in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security. \xa0The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project. \xa0Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practices.", u'entity_id': 14771, u'annotation_id': 7469, u'tag_id': 856, u'entity_type': u'comment'}, {u'quote': u'Dear\xa0Jenny Gkiougki, Appreciating your kind efforts which reflects the defination of food security too i.e.\xa0The final report of the 1996 World\xa0Food\xa0Summit states thatfood security\xa0"exists when all people, at all times, have physical and economic access to sufficient, safe and nutritious\xa0food\xa0to meet their dietary needs and\xa0foodpreferences for an active and healthy life".', u'entity_id': 16179, u'annotation_id': 7468, u'tag_id': 856, u'entity_type': u'comment'}, {u'quote': u'The Foodsharing idea (https://project.yunity.org/about_foodsharing in English) just makes so much sense.\xa0\n\nI am not completely sure we can classify it as "care", though. But perhaps it\'s not even \xa0that important.\xa0\n\n@Paul_Free, I know there are plans of community (vegetable)\xa0gardening as part of the city of Galway\'s bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?\xa0\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentcommunity gardens\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 9428, u'annotation_id': 12695, u'tag_id': 2062, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 7472, u'tag_id': 2062, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 7471, u'tag_id': 2062, u'entity_type': u'post'}, {u'quote': u'Hellenic Network for Agroecology, Food Sovereignty and Access to Land\nSince the crisis begun, it is becoming increasingly difficult to do anything in a formal, legal way. This is one of the main reasons why most groups here operate under the radar -which on the other hand is not necessarily a bad thing. But this means that growth comes in relatively slow steps and is hindered by the lack of access to funds and other resources. For example, setting up an NGO costs around \u20ac1000 and has an annual \u20ac1000 \u2018trade tax\u2019 (literally a levy to allow you to do business) -this applies to social enterprises too. And although this is not as bad as having to prepay 100% of next year\u2019s taxation like with most small businesses (or 50% for farmers) it still might pose a problem for people who want to do exactly that: do something without business profit in mind.\nSo in this context, I am happy to announce that we are currently in the process of setting up our grass-roots non-profit organisation to to help us with our endeavours in these fields. What we have in mind is summarized in the following fields of action:\n\n\nAssist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible.\n \n\nIn collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides.\n \n\nSave Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land\u2019s status as a common good.\n \n\nIncrease awareness and offer technical support, training, and tools to create CSA schemes around the country.\n \n\nPromote the creation of Food Policy Councils around the country.\n \n\nBecome the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources.\n \n\nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes.\n \n\nSo if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces', u'entity_id': 560, u'annotation_id': 7476, u'tag_id': 859, u'entity_type': u'post'}, {u'quote': u"My name is Jenny Gkiougki and I am one of those Greeks that went back home during the crisis. (For an account of how I came about this decision and my take on the crisis please follow this link here on Edgeryders) During my residence abroad I was working as a business consultant and marketer. After ten years, I decided to return to my Greece to contribute to the local community and help with the bringing about of change. I am currently (amongst others) working on a project called \u201cReal Food Utopia\u201d as a co-facilitator with a foreign research partner, dealing with the mapping of alternative food systems in the region of Thessaloniki. (For a full list of all the projects I'm working on currently and the great and exciting things we are creating in Greece and in EU and links to many of them please look here at another of my posts).\nThe workshops of the project are related to alternative economies, peri-urban gardening, refugees and food through a participatory procedure between people who belong to informal initiatives all around the city. This procedure also includes training in participatory video making and working on all its processes (ie. storyboards, editing) in order to create audiovisual material and share the technique with everyone who is interested in it.\nI am a member of the URGENCI International Network of Community Supported Agriculture, the European Research Group on CSA, and the European Movement for Food Sovereignty. I have been working as an activist on matters related to Food Sovereignty for 5 years and I am currently cooperating with a team of another three more advocates to create a legal entity to represent grassroots initiatives. In the near future, we would like to expand our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad.\nI am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.\xa0 I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains.\nWe would like to address the needs of small-scale farmers who wish to obtain access to European food markets at fair prices, but also consumers of all ages who become more conscious about food production and consumption. I would like to engage in interactive campaigns and seminars that target informal collectivities who are interested in food sovereignty, but lack financial resources and technical support. Our community project will form a new hub that will host them and their projects.\nWe are interested in creating a new agricultural production model in Greece, focusing on agroecology and self-sufficiency in the context of land and food management, considering limiting factors such as economic hardship. All in all, we pursue the transition to a new way of thinking and living through an \u201cumbrella\u201d project which consists of several innovative schemes.\nThe main scope of the project is to empower rural farmers and inspire rural lifestyle, by combining traditions and technology, based on the principles of permaculture. We wish to enhance small-scale agriculture, in order to revive Greece\u2019s rural areas and promote an economy that is based on social solidarity and alternative currencies.\nWhat we have in mind is summarized in the following fields of action:\n\n\nExporting network of agricultural products in Northern Europe (especially citrus, olive oil and \u201cugly\u201d fruits) that are produced by small-scale farmers to solidarity collectivities at fair prices.\n \n\nPromotion of food security and food sovereignty in Greece.\n \n\nRespond to the mainstream challenges by using our ingenuity and creativity for social \u2013nonpersonal- benefits.\n \n\nReduce food waste promoting \u201cugly\u201d fruits and vegetables focusing on good quality.\n \n\nBoost local economies and offer technical support to Community Supported Agriculture schemes.\n \n\nCreation of an official Greek hub for non formal groups working on food sovereignty that lack financial support.\n \n\nSaving of Greek agricultural land from the Hellenic Republic Asset Development Fund and ensuring its utilization through concession or purchase by our group in the context of communal ownership.\n \nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns. Also, we are very interested in local pupils and students who are a significant target group", u'entity_id': 750, u'annotation_id': 7475, u'tag_id': 859, u'entity_type': u'post'}, {u'quote': u'I\u2019m glad the idea (and the movement) of Food Sovereignty is spreading! And I will grant you that becoming self sustainable and autonomous is no easy feet. On the other hand, everything is as simple or as hard as we make it out to be. In nature everything is connected and everything functions through viable, long-term, symbiotic relationships. In this new model of a new society based on solidarity, collaboration, and fairness we are', u'entity_id': 11122, u'annotation_id': 7474, u'tag_id': 859, u'entity_type': u'comment'}, {u'quote': u'The next cornerstone came in August 2011 when I was fortunate enough to be part of the Greek delegation for the\xa0first Nyeleni Forum on European Food Sovereignty. That was it for me. I decided to stay. And help. With all my strength. Since then, I dedicated myself and all my resources to bringing about change -and what a ride it\u2019s been! I can honestly say that I have never before worked as hard and with such persistence -even when I was working for a paycheck! Of course that meant many sacrifices on my part and a complete change of lifestyle as I immersed myself in the gift economy and found out how it is to have your needs met without money being the first resort.\nSince then I got involved with and instigated the creation of various groups, collectives, anti-privatisation initiatives etc. In October 2011 I co-organised the first Greek meeting on Food Sovereignty. In 2014 I organised the Permaculture Caravan -roaming the country for six weeks with Permaculturist Peter Cow spreading the ideas of autonomy and self sustainability and creating a new hype for Permaculture around the country. I joined \u2018Neighbourhoods In Action\u2019 -a group of eco-activists that managed to get elected in local government council of Thessaloniki -and played an important role in our municipality signing the\xa0Milan Urban Food Policy Pact\xa0for the creation of Food Policy Councils. I am currently trying to put our municipality in the\xa0European Network for Cities for Agroecology, and I am the focal point for Greece -ie contact person, for the\xa0European Food Sovereignty Movement\xa0and\xa0URGENCI -the Community Supported Agriculture Movement.\nI am interested in creating a new agricultural production model, focusing on agroecology and self-sufficiency and I believe we need to pursue the transition to a new way of thinking and living. We live in a time of confluence where the old and the new are still co-existing and that creates a very challenging atmosphere, so people need support, tools and skills to make it through.\nWe need to get involved with things like Community Supported Agriculture (CSA); sharing risks, responsibilities and rewards between growers and eaters of food, creating a new concept of human relationships, and new kinds of communities. Out of the ten million inhabitants of Greece almost half live in the area around Athens and one in Thessaloniki. There are whole regions -especially in the mountainous parts of the country, filled with ghost towns. The cities are dying due to the continuous austerity packs that suffocate entrepreneurship and chances of finding work. We need to revive rural areas by promoting small-scale agriculture, empowering farmers and inspiring rural lifestyle, by combining traditions and technology, and promote an economy based on social solidarity and alternative currencies. \xa0\nThis is also, in its heart, a political issue: we need to emancipate ourselves as political beings, as citizens and as consumers and we need to create a new way for governing and caring for our societies and be responsible custodians of the abundance of nature for ourselves and all other species and for the generations to come. \xa0\xa0\n*For my take on the crisis as a \u201cvirtual crisis\u201d and what it means for our food, please watch my\xa0short speech\xa0during\xa0Solikon Berlin\xa0(The Solidarity Economy European Congress 2015) last year.', u'entity_id': 559, u'annotation_id': 7473, u'tag_id': 859, u'entity_type': u'post'}, {u'quote': u'An example of community project I recently took part in - along similar reasoning, is a community food waste dinner:\xa0takes a resource many people have: food leftovers - and use it to cook new dinners for others who could learn and do the same. Not poor people, but people who can then go home and reuse their waste in some positive way instead of throwing it to the garbage. Pay it forward, indeed.', u'entity_id': 9905, u'annotation_id': 7485, u'tag_id': 860, u'entity_type': u'comment'}, {u'quote': u"I'm curious what is an actionable proposal from the group and how it is being received..?\xa0Going straight into policy making seems like a titanic work, i'd be interested in how food waste is being approached at the policy level, if at all?\xa0This seems like a topic many people care about and which is already seeing promising small scale solutions, particularly in Germany.. with Foodsharing.de, Yunity, community gardens, pop up\xa0fridges and many others.", u'entity_id': 9353, u'annotation_id': 7484, u'tag_id': 860, u'entity_type': u'comment'}, {u'quote': u"Food waste is largely about food that doesn't even end up in your fridge - it gets wasted before that. See example\xa0of supermarkets throwing away perfectly good food\xa0as a very common one.", u'entity_id': 26946, u'annotation_id': 7483, u'tag_id': 860, u'entity_type': u'comment'}, {u'quote': u"Somewhere people were calling for money to buy food to be distributed on poor people during the Ramadan. I can't see how do you waste food. Do you cook food, eat and through the remaining away instead of storing it in the fridge for next day?", u'entity_id': 26016, u'annotation_id': 7482, u'tag_id': 860, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 7481, u'tag_id': 860, u'entity_type': u'post'}, {u'quote': u"Thank you for compliments, @Noemi! I have something to add to this collection of great ideas and initiatives. In Berlin, there is a group of young Philipino/Brasilian\xa0artists called Nowhere Kitchen who cook with surplus food. But there is so much more to it - they engage the people in chopping and preparing, but they take over the cooking process, so we do not end up with random, kind of awful food. Their recipes were stunning and combinations of tastes surprisingly delicious. The whole evening a guy was jamming to it some ambient/psychedelic stuff on guitar, and when the serving time came, they did a whole spiritual\xa0performance before we started eating. I've been there, and some people from the street came around to join in. It was beautiful! And I think in such a delightful form eating leftovers can be dignified, and very political. (OK, some say the food didn't come out always as great as I remember it -\xa0that's probably the rule of cooking with random leftovers).", u'entity_id': 23981, u'annotation_id': 7480, u'tag_id': 860, u'entity_type': u'comment'}, {u'quote': u"A much-needed initiative and a fun night at that, congratulations!\nIn Belgium there is a lot of stuff happening around food surplus. Plenty of young people are launching projects and little companies around the idea. Mainly in Brussels, but also in Ghent and other cities. There's a an overarching organisation\xa0that connects and supports all the initiatives: Food Surplus Entrepreneurs Network. They share experience, knowledge, connections and raise awareness.\nThe last weeks they did a succesful campaign for recuperating surplus apples, Juice for Change. Fruit leftovers are a major problem for Belgian farmers at the moment. From idea to execution and launching their crowdfunding it took about one week, with plenty of volunteers pitching in.\nI hear similar community dinners popping up here and there, but I haven't been.", u'entity_id': 19863, u'annotation_id': 7479, u'tag_id': 860, u'entity_type': u'comment'}, {u'quote': u"I'm Sabina, an Environmental Protection master's student from Cluj, Ro, who has attended the event.\nI was honestly very impressed with the event, I congratulate the initiative and the work behind it and even if I was there only to help with the preparing of the food, tasting of the delicious soup and amazing carrot cake, I couldn't help but notice and fully enjoy the community feeling roaming around while slicing potatoes and washing dishes while the food was being prepared by the chefs and volunteers.\nEven though my thesis is precisely on Food Waste, and I've gained knowledge on the issue while researching,\xa0I was so sad to find out about the baby spinach, lemon and other products that were left to rot next to one of the hypermarkets' dumpsters in town.\xa0\n... I can only be happy the Food Waste Combat team came 'to the rescue' and I hope I will be able to attend more of their events (and give a helping hand)\xa0that would slowly bring awareness regarding this burning issue that we only see the smoke of... yet.", u'entity_id': 14250, u'annotation_id': 7478, u'tag_id': 860, u'entity_type': u'comment'}, {u'quote': u'Lately I\u2019ve been having sudden cravings to get offline and do to things with my hands which don\u2019t involve a keyboard. With several people in town we hosted a community dinner as a way to take action against something happening every day under our noses - massive good food throwaway. By households, restaurants, markets and especially supermarkets, by you, by your family, by your neighbor, by me. We collected food close to being dumped and got people to cook together and share a meal while interacting heavily around the issue.\n\nI won\u2019t ramble about why it\u2019s important we pay more attention to food overall - from where and how far it comes from, the cost of having nicely chopped avocados on a restaurant plate, to how we pick stuff off the supermarket shelves and never wonder where the brown bananas are going, to how we realize our canned peas are overdue after having been hidden in overstuffed fridges or pantries (it\u2019s a trap!). You know this already, right?\nFood Waste Combat in Cluj (FWC) is a local collective experimenting with creative ways to address the issue, and I joined them for many selfish reasons, but mostly because I\u2019d like to see food activism reach educated, resourceful urbanites. I\u2019m one of them and I think as a group we can do better. We\u2019re well positioned to use a tiny bit of our time doing something other than work, other than expensive hobbies, other than just consuming. It seems teaching each other how to eat is a pretty low hanging fruit.', u'entity_id': 798, u'annotation_id': 7477, u'tag_id': 860, u'entity_type': u'post'}, {u'quote': u'Hi @Michael_Dunn and welcome! I think that important detail\xa0in your story "footcare clinic" will make you and your work easier to be found by other edgeryders around.\xa0\n\nI looked\xa0up details about the project\xa0and found your crowdfunding campaign page.. how come you stopped at food care as a way to describe it best, even though I see you provide many other basic first aid - medical supplies, tea etc.\n\nIn the past year we met many people who do relief, aid, skilling up\xa0work with regugees.. most of the projects are local scale\xa0- the Orange House in Athens (15 residents and 50 people around to receive some services), a Refugee 2 Refugee Solidarity Call Center\xa0in Thessaloniki, informal and bottom up,\xa0and crowdfundedfunded through\xa0an international campaign.. or ad hoc backpacks packing\xa0to welcome people in Kos Island, Lesbos..\xa0and beyond.\n\nMost of them point at the need for better\xa0coordination among community leaders, citizens\xa0donors, organisations,\xa0and other businesses and organisations in the ecosystem..\xa0What has been a major challenge for you as you went on the road?', u'entity_id': 7915, u'annotation_id': 12696, u'tag_id': 2063, u'entity_type': u'comment'}, {u'quote': u'hello Edgeryders,\nI am part of the golden foot collective. we took a mobile independent footcare clinic\xa0and cinema\xa0from scotland to italy and serbia. \xa0To help in the migrant crisis. there were\xa08 of us and we had 2 nurses and 2 mechanics. everyone had done\xa0some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.\xa0 it all worked well. \xa0since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments?\nreduce there expectations of situations to allow them to see what is happening? how do we get people to learn rapidly as this is the only way to stay on top of quickly changing situations? how can more of the knowledge and expertise that has been aquired be passed on more effectively? \xa0in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?\ncoming from scotland we live in an end destination. how \xa0can we have effective solidarity with those that live on transit routes as well as those in transit?\nI am producing zines and perhaps in the future i will do a podcast but i come here with alot of questions.', u'entity_id': 860, u'annotation_id': 7486, u'tag_id': 2063, u'entity_type': u'post'}, {u'quote': u"Many foreign companies like to employ people from Sri Lanka or Indonesia because they are more skilled and less corrupted... We have more and more foreigners who are coming here to get rich. It's also another gate for economy and illnesses from both sides.", u'entity_id': 746, u'annotation_id': 7487, u'tag_id': 862, u'entity_type': u'post'}, {u'quote': u'\u201cFor me it was very interesting to hear what makes something seem foreign and why we feel home. What makes this happen?\u201d', u'entity_id': 494, u'annotation_id': 7488, u'tag_id': 863, u'entity_type': u'post'}, {u'quote': u'Our schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it\u2019s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical.', u'entity_id': 828, u'annotation_id': 7490, u'tag_id': 864, u'entity_type': u'post'}, {u'quote': u"Those four are daunting to put into an agreement to say the least. \xa0And maybe the group or the founders don't want such things to be formalised not because it is hard, but because it is better to not get formal with them.", u'entity_id': 15392, u'annotation_id': 7489, u'tag_id': 864, u'entity_type': u'comment'}, {u'quote': u'The will to freedom is the only thing that is stronger than the will power. I suggest to look for and improve forms of agreement not to be dominated (nondominium instead of condominium). Second point: how do we measure \u201cunits of care\u201d. Third point: the destination is not the point, just like in the urban game the point was not getting to the coordinates.\n\n\n\nbilal:', u'entity_id': 38811, u'annotation_id': 11752, u'tag_id': 869, u'entity_type': u'post'}, {u'quote': u'It seems like you really know what you want from life, which is something not many of us can say even those who value freedom just as much and above all. I have been working on Edgeryders and putting a lot of my energy into building the kind of thriving network you mention but using\xa0an Internet island of people who think and dream alike.', u'entity_id': 6850, u'annotation_id': 7501, u'tag_id': 869, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 7500, u'tag_id': 869, u'entity_type': u'post'}, {u'quote': u'low-fee/no-pay clinic.', u'entity_id': 521, u'annotation_id': 7492, u'tag_id': 866, u'entity_type': u'post'}, {u'quote': u's decision is based on my view that psychological knowledge, and therapeutical knowledge, are all based on dozens of years of collective practice and wisdom accumulated which should be available to everyone without limitations, certifications, individualisation...', u'entity_id': 740, u'annotation_id': 7494, u'tag_id': 867, u'entity_type': u'post'}, {u'quote': u"We are a community of freelance developers and other digital professionals who work together online often purely over the internet. We started our project RefugeesWork to help newcomers to connect with locals who are looking for freelancers to outsource some work to them.\n\nIt all started in August 2015 when lots of newcomers, mainly from Syria, arrived to Germany.\n\nIt now turns out that it\u2019s not very easy for them to find any kind of employment at all. German companies seem to not need the skills they bring to the table and even if they do have what they are looking for, they often reject people who do not speak German well.\n\nWe decided to use our digital skills, first of all programming, to help them. We developed a marketplace app where on one side newcomers can register and describe their skills and on the other side local organizations can post their requests for freelancers. We believe work is the best pathway to connect refugees and locals and to date, we have over 300 registrations on the site and big community in Berlin and online. Those Syrians come from all walks of life and some have excellent background, or were running their own business.\n\nBut we also realized that freelance requests are mostly for freelancers with web and mobile development background. These are the jobs freelancers can do online, they don't need to speak the local language and because all the organizations are trying to automate their processes, there is actually a big need for these professions. We checked our database and available statistics and figured out that most of newcomers are young, they just finished their high school or had to leave in the middle of their studies so they actually lack necessary skills to integrate into the highly specialized German job market. Freelancing would give refugees freedom from discrimination they would face otherwise and freelancers are usually paid way better. The tricky part is in making sure there is a regular flow of work. That is our experience.\n\n\nRefugeeswork.jpg960x638 84.1 KB\n\n\nTherefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don\u2019t even know what to do with all the money.\n\nCurrently we are also following the work of Sensorica in Canada and Enspiral in New Zealand. Our wish is to create a micro-holding co-ownership model. One part of the motivation is to shield these professionals from all kinds of discrimination that they might otherwise experience.\n\nIt shields them, for example from the usual politicking among corporate employees who might tend to put such newcomers into a fairly low place. And another part of the motivation is exploring processes and legal ways for cooperation and decision making between many micro-holdings.\n\nWe try to list all our initiatives inside of Github organization SquatUp.\n\nWe try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat.\n\nAll our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us.\n\nIt\u2019s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other.\n\nSo if you are a programmer, \u201dapptivist\u201d, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps.\n\nIf you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time.\n\nAnd last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.\n\nLinks:\n\nRefugeesWork - www.refugeeswork.com\n\nOnline JavaScript school - www.wizardamigos.com\n\nCoding Amigos meetup - www.meetup.com/codingamigos\n\nCoding Amigos collective - www.codingamigos.com\n\nSquatUp - https://github.com/SquatUp/projects/blob/master/README.md\n\nNina Breznik - @ninabreznik\n\nAlexander Praetorius - @serapath", u'entity_id': 769, u'annotation_id': 12697, u'tag_id': 870, u'entity_type': u'post'}, {u'quote': u'GNU Health is a sister initiative which we discovered at the Open Source Initiative and some time later at the Internation Symposium on Open Collaboration.\nGNU Health concept is simple as free software: all people should collaborate to build a common of knowledge instead of building competitive, exclusive systems that hinder access to healthcare services of quality. GNU Health ensures that the different therapists and doctors who follow our children have the best available information about them, so that they can provide the best advices for the best health outcomes.\nThanks for all efforts put in developing this project!', u'entity_id': 13941, u'annotation_id': 7499, u'tag_id': 868, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11539, u'annotation_id': 7498, u'tag_id': 868, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 7497, u'tag_id': 868, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 7495, u'tag_id': 868, u'entity_type': u'post'}, {u'quote': u"SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust.\xa0And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that.\n\u201c\u2018Trust is an enabler to use the resources.\xa0How can that be created inside an eclectic group like this?\u2019,asked Yannick.\xa0 For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.\xa0\nWinnie reacted that your own people's trust is a constant, but gaining the network's trust is more difficult.\nWith the help of Nadia we\xa0made a synthesis of the discussion\n1) Working trust is very different from social trust; and there needs to be a boundary.\xa0\n2) What also worked for her is deciding to work on even a small project.\n3) A story that binds us together - understanding how our different activities are related\n4) Documentation: what does it mean? for us it has been in writing.\nFinding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow.\n\nWhen the discussion was coming to an end we all felt we had got a lot of information and the workshop was going to close. So Nadia came up with a good idea to end the workshop with something concrete. We all felt that one of the biggest issues in care is that we live to much on our own island and that if we want to make care better we need to share and collaborate. But to collaborate we need to create trust. So this exercise was given to every participant and will hopefully end up in solidifying the care network in Belgium. The following question was asked:\nWhat can i bring to another organization, that also better myself as a person and is easily realizable?\nThis question will be asked again at the next meeting we are organizing. If you want to join, fill in the framadate and put your contacts in comment. We will update this discussion at that point and see how we have concretized the thrust issue.\n\nhttps://framadate.org/gWB9QN65MCyedmrL", u'entity_id': 788, u'annotation_id': 7503, u'tag_id': 871, u'entity_type': u'post'}, {u'quote': u'SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust.\xa0And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that.', u'entity_id': 541, u'annotation_id': 7502, u'tag_id': 871, u'entity_type': u'post'}, {u'quote': u'To collaboratively design, develop, and implement the blueprint for an intentional need-fulfillment community where purposefully driven individuals are fulfilled in their development toward their highest potential state of human experience for themselves and all others.', u'entity_id': 765, u'annotation_id': 7504, u'tag_id': 872, u'entity_type': u'post'}, {u'quote': u'First of all they told me where my ideas were no good and what research needed to be done. Together we coined a method, not an ambitious cure, just a simple idea that could help a bit and during my Ph.D dissertation, we demonstrated feasibility of restoring the hand function using electrical activation of the paralysed muscles. Not a fits all solution and not perfect, but as people say: when you have nothing, a little is a lot, and for some people it works well (see the video)', u'entity_id': 516, u'annotation_id': 7507, u'tag_id': 873, u'entity_type': u'post'}, {u'quote': u'Despite a cold and rainy evening the FES cycling event was successful. \xa0The test riders got carried away pedalling with FES activated legs. This was an open air event showing functional and fun use of scientific results. The\xa0imperession was that the BerkelBike was useful and we should work on making more readily available.\nMore information here:http://wehandu.it/it/eventi/', u'entity_id': 29078, u'annotation_id': 7506, u'tag_id': 873, u'entity_type': u'comment'}, {u'quote': u"The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I\u2019m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling?\nFES - short for functional electrical stimulation - can be used to activate paralyzed muscles by impulses imitating the nervous system in the most natural way possible. We have come a long way with our research and it is possible to use this technique to let people with paralyzed legs cycle again. For some reason there are very few people who know about this so I\u2019d like to share this knowledge with you.\nWe cycle to move, but also to maintain fit. It can be both fun and functional. But, if your legs don't obey you anymore, you will probably not consider it a possibility. Paralyzed legs can result from an accident breaking your back, a stroke or a sneaking disease like the multiple sclerosis. \xa0\nPeople caring for and curing you need to be very pragmatic, and you with them. Mobility then becomes reduced to passive transport, a dietetic approach to avoiding getting fat and medication of pressure sores and other side effects from lack of physical exercise. That\u2019s where the publicly unknown FES research comes into play. Years of clinical research have consolidated the benefits, but we need to spread the news and understand more about it. Some people may already have heard of handbikes. They allow you to cover greater distances than manual wheelchairs. They are special tricycles where you use the hands for pedaling.\nFES, on the other side, is applied via adhesive electrodes or incorporated in bicycle shorts. The stimulus activates the muscles of the buttocks and thighs in sync with the ride. \xa0However only the leg muscles can challenge the cardiovascular system to get physically fit. Some people with for example spinal cord injury (paraplegia) may be able to use FES for activating these large muscles. \xa0With FES cycling they can cover greater distances with greater speed and due to activation of large muscles they get (bene-)fit and feel physical well-being. The research community has tried to promote a more widespread use of FES cycling by arranging races (see here) and publications with the user's statements of the pros and cons\xa0(see here).", u'entity_id': 759, u'annotation_id': 7505, u'tag_id': 873, u'entity_type': u'post'}, {u'quote': u"thank you for the in dept questionary.\nWe started doing the bigger work in the building the last couple of weeks. We were happely surprised that the water problem didn't harm the wood that hard. On the first floor we have a sort of chill room that is used as a backstage for the bar downstairs as well, a multi media room with possibility to watch movies or have podcast sessions, a closed room for private meetings and a toilet. The second space is used as recording and repetition space at the moment, but will graduatily become multifunctional too. On the third floor we have a big open space with lots of natural light and a working plumbing system. The electricity has been cleaned and we are installing now new wires. We will install a kitchen in low tech design there and we still have space for other things. On the fourth floor we have access to a roof of 40m2 and also a ceiling that was renewed not that long ago, we only have some problems of mushrooms there that need to be taken care of. On the long term we hope to have complete green energy providers , solar is possible. But also trying to create a consience for not using to much energy. On the fourth floor we hope to bring a sauna, sleeping capsules and also an urban garden on the roof, all this is being analysed at the moment.\nWe have 2 handy mans, a designer, a woodworker and an interieur designer helping in the house at the moment. We also have access to different FabLabs around Brussels that will come help us later on. We maybe going to try to contact the bellastock organization of brussels to work around the industrial resources.", u'entity_id': 26951, u'annotation_id': 7511, u'tag_id': 875, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 26029, u'annotation_id': 7510, u'tag_id': 875, u'entity_type': u'comment'}, {u'quote': u'Hey @WinniePoncelet! The fact that you could set up an education program in addition to your biohack space says a lot with respect to how open you keep your initiative. With questioning sources of funding, why do you guys feel the need to position yourselves so clearly? Do you have to choose how much anti something like government you are?\xa0Have you had opportunities to work with big biotech and passed?\xa0I\'m\xa0curious because it looks like\xa0hacker values are there\xa0from ReaGent inception - openness, freedom, passion.. so even if the model changes or mixes government funds with revenues through lab\xa0membership or\xa0classes you will still be operating under those things.\xa0\n\nWith Edgeryders we had always had\xa0some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It\'s somewhat natural, as long as the work is aligned with our mission\xa0and speaks for itself.\n\nOr:\xa0Is bioengineering these days\xa0\xa0so controversial that you need to be firm about what you are willing / not willing to do and who you\'re doing it for?\xa0\n\nI would recommend you read a short piece about selling as a moral act by @lasindias and invite @Juanjo_Pina who is experienced in activist market production\xa0to give a piece of advice. In the past they were asking if the market is\xa0the "ultimate alternative to the enclosure of fresh ideas into the dependence of public money or a way for converting activist into established business people"?', u'entity_id': 7536, u'annotation_id': 12699, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'do we think that we could find a funding agency willing to cover some of the costs related to pulling this project together?\n\nI look around and see many people on here who have 1st hand experience of dealing with crisies and disasters around the globe. I assume all of us could reach out to at least 2 or 3 major organisations who would be interested in contributing to a large scale \xa0useful project like this.\n\ni wonder if we could approach an organisation like Wellcome Trust as a humanities/health cross over project? What do you think @Bridget_McKenzie? Would this be fundable if we polished up the process and deliverable ideas?\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 13498, u'annotation_id': 12698, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?', u'entity_id': 6459, u'annotation_id': 7536, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u"IY Science Network want\xa0to participate in the panel to present the perspective of bottom-up research initiatives. They're exploring both the short term (how to get funded now) and the long term (how to change funding policy culture).\xa0Ping @Lucy", u'entity_id': 6671, u'annotation_id': 7535, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'Rita made an overview of the requirements for starting the lab work, here. How do we put together the funds and who has materials to donate?', u'entity_id': 6373, u'annotation_id': 7534, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u"How do we ensure long term sustainability for our project?\nWe originally raised a little over $15k to get started via a crowdfunding campaign, a small budget that has nonetheless proven adequate. We've been fortunate that we've been able to stretch our financial resources a long way with donated and deeply discounted second-hand equipment and reagents, and the contributions of skilled volunteers to keep our equipment running. Thus we have no recurring expenses, which has proven to be the most important way to conserver resources and keep the project sustainable in its high-risk seed phase. This has put us on a firm foundation to\xa0reach our first milestone, the production and isolation of proinsulin, the first major step on the way to making the mature, active form of insulin. Once that is done, we plan to pursue our next steps and undertake whatever further fundraising effort we may need to do so, possibly involving a distributed ownership structure and holding and sharing of the fruits of our efforts under some sort of peer production license\xa0to ensure we develop a viable commons around our work.\nChallenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!", u'entity_id': 859, u'annotation_id': 7533, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u"Wow - congratulations on the World Bank bid. That's huge.. It would be great to dig deeper into these kind of strategies. It would be great to see your past funding applications.\nI had a conversation with Shannon Doesmagen (PublicLab executive director) recently - they frequently act as fiscal sponsor for other projects, fielding a lot of funding from private foundations and donors, very occasionally public funding (they're based in the US). Most recently they've been managing a lot of funding that has come in for the Environmental Data Governance Initiative (EDGI). It's a little different, but the same trust issues apply. I think they would also be happy to share the details of their practices.\nIn Germany, Open Knowledge Foundation fairly recently launched their Prototype Fund, which distributes funding from the German Education and Research ministry to smaller civic tech projects. Again, similar but different. I could see what I can find out about that as well.\nNeither of those are so clearly about ecosystems or focussed collective action between smaller initiatives, as edgeryders is. But interesting nonetheless. I think this could be a really interesting and practical discussion.", u'entity_id': 14809, u'annotation_id': 7532, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u"A little context: Last year we ran a small experiment to build a collective bid for the MacArthur Foundation's 100 Million USD grant. Edgeryders wrote the meta application, and then set up a simple process through which projects could attach themselves to the bid (approx requirement of work for each participating project=\xa02.5hr). The Edgeryders organisation was the organisation which would then take responsibility for managing the funds.\xa0We did manage to get past the first round (administrative due diligence). It was a good way to go about it in that it also helped us better understand what people in the OpenCare/broader Edgeryders community need. The design of the OpenVillage festival is based on what we learned.\nI don't know if you saw that we just won a World Bank bid. The work we will be doing will build on this idea of nurturing initiatives as part of a collective effort towards something. We're still learning how to do this, but the results so far are promising. So maybe it could make sense to dedicate a session to sharing strategies, even past funding applications that worked for remixing etc...", u'entity_id': 7509, u'annotation_id': 7531, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'How do we\xa0fund our projects? How do we sustain our project financially?', u'entity_id': 6439, u'annotation_id': 7530, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 7529, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse\xa0effects in biotech\xa0are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The\xa0time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books).\nThis is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories\xa0from the news today:\xa0http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right.\nThe obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this.\xa0The potential of open medicine is there in the long term however.\xa0It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes.\nAnyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.", u'entity_id': 27807, u'annotation_id': 7528, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u"The project is to be developed for individuals, hobby-farmers to the mega agricultural industries and it's not only for B2B bussineses.\xa0\nWe have more than a lot of arguments covering our requests and developing. Investing on this project will bring financial and social goods and will give a very effective and professional solution to this space of the working cycle.\n\nThe website is just an presentation of our main activities, but programming and developing is something we do on other behalfs of time.\nYou can also visit\xa0the\xa0social network, founded\xa0by our Team member Mr. Herolind Luzha and it's under https://www.itrendin.com/ to find or download it on forAndroid or IOS.\n\nWe have 2 type of fundraising presentations and also a very precissive description of the project which i would gladly also share with you.", u'entity_id': 14028, u'annotation_id': 7527, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u"I'm about ti explain shortly my story. It starts with the topic the Phoenix Spirit which also describes all my way till here. Struggling with several experiences and job possitions, building and colliding several bussineses, reached the experience to build a new company Phoenix Connections and set my soul on it. In Phoenix Connections agenda we have projected an Agro-Technological project called Agro-Bot which will help farmers and Agriculture reach higher scala of yields, productivity and enlarging the farming land.\xa0http://www.phoenixconnections.net", u'entity_id': 571, u'annotation_id': 7526, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'We need a little money to finalize the platform. Anyway, the activation process has said have many steps. The choice on how to redistribute part of the value generated by the users is made by them deciding to which project pledge their money. This could be also done by Hosts but not in the same % because will have too much "power" and the risk is that they will favorite projects that they know personally.', u'entity_id': 23282, u'annotation_id': 7525, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'In general, there\u2019s a tendency for new initiatives to struggle in the initial fundraising. It\u2019s easier to get funded if you are already big or active enough.\nIf you have applied for any grant, you know how competitive these things can be, and\nprobably you understand how the abundances of projects and the lack of funding\ntend to lower the diversity of the ecosystems and sometimes discourage innovative ideas - This doesn\u2019t apply to for-profit start-ups that can rely on other types of financial support (VC, Business angels, etc) -.', u'entity_id': 829, u'annotation_id': 7524, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'The question that I posed in the initial post\xa0was on how to fund education outside of, but as an addition to, the traditional state-funded system.', u'entity_id': 530, u'annotation_id': 7523, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'For now, he is searching for more funding, hoping to build upon the CHF 50,000 grant he received as a Rolex Award Young Laureate 2014. While funding issues have been a constraint, the pilot tablets he has been able to produce are now being tested in hospitals in Cameroon.', u'entity_id': 555, u'annotation_id': 7522, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'2) Funding and resources: I would need start up funding for the first couple of years to get the project to a self-financing stage, and a trusted accountant and solisitor to take care of such things.', u'entity_id': 17562, u'annotation_id': 7521, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'Our project has been supported by the Fondation Pierre Fabre, which believes in our approach and that our concept could be used in Africa, where doctors lack medical imaging devices. They provide financial support and other resources - and the more we have, the faster and more efficiently we can do our work.', u'entity_id': 732, u'annotation_id': 7520, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'I suppose you needed some financial support to get the Living Street experiment going. Evaluation is a particularly hard task to get people to do as voluntary work. Where did that come from?', u'entity_id': 33762, u'annotation_id': 7519, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'One last but very important point is that the funds for this ambitious project are being raised through an international campaign of crowdfunding in both euros and faircoins, which are being used to cover incomes of the refugees working in the project and their home rent. Being a cooperative initiative, this means that all the incomes are being equally distributed among the members, currently four in number, three men from Gambia, Egypt and Morocco, and a woman from Syria.', u'entity_id': 792, u'annotation_id': 7518, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'http://translate.google.com/translate?hl=en&sl=auto&tl=en&u=http%3A%2F%2Fwordpress.katastrophennetz.de%2F\nI would expect they could also point out funding opportunities. Perhaps one could divert some anti-terror money to useful activities in resilience?\nA simple way would be to coordinate with some of them:\xa0http://wordpress.katastrophennetz.de/masterstudiengaenge/ for a master thesis project.\nHe was in charge of "cross border support workshop"\xa0 (I\'ll update if I find something English, this is Austrian-German), and works with the gov civil protection.', u'entity_id': 13500, u'annotation_id': 7517, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'As for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!', u'entity_id': 11020, u'annotation_id': 7516, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you\u2019d like to give me a tip, share an idea, help me prepare the tour - leave a comment.', u'entity_id': 740, u'annotation_id': 7515, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'Also curious to know how it was initially funded, did you rent or buy a building and grow from there or did you build something new (the image with your post is a co-housing experiment I\u2019m somewhat familiar with, is it related somehow?).', u'entity_id': 21004, u'annotation_id': 7514, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'fundraising is painfully slow.', u'entity_id': 6759, u'annotation_id': 7513, u'tag_id': 876, u'entity_type': u'comment'}, {u'quote': u'What do we want? Funding, of course! However, we are aware that models based on funding are becoming increasingly under pressure. So we have started a "Friends" scheme, to ask our participants, and anyone else who thinks that the free opportunities we deliver are a good thing, to contribute.', u'entity_id': 1710, u'annotation_id': 7512, u'tag_id': 876, u'entity_type': u'post'}, {u'quote': u'How the health care is funded: (is it governments paying with taxes? Charities? The communities themselves dealing with the problems, without outside help?)', u'entity_id': 10261, u'annotation_id': 12701, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'In my community, I conducted some project to give better life to people by hearing their needs and build solutions together. Like safe water to drink as I did in my village several years ago. I am not supported even by the state or by the rural council. If the pump is broken or whatever, I pay money to keep it going. I cannot ask villagers for money because they don\u2019t have it.', u'entity_id': 37182, u'annotation_id': 11790, u'tag_id': 877, u'entity_type': u'post'}, {u'quote': u'I would also like to help find funding for us all to keep learning more and ultimately help make the world better...  (I finally filled in the form this morning...)', u'entity_id': 38966, u'annotation_id': 11725, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'Active in the startup sphere. Mostly in technology companies. Invested in 15 companies. Most angel investors invest in what they know, eg. real estate.\n\n\nPaola:\n\nConsider fellowships. Very analytical, structured way of approaching questions. Her work is looking at use of data in issues of social justice and criminal justice system. Used to work in Data For Justice: show inequalities in the criminal justice system. Lawyers, activists, advocates, \u2026 Gathered data and sued police department of Boston because they refused to open their data. Won the case. They were doing more stop and frisks in poor neighborhoods. The community was disproportionately targeted by the police department.\nBut she was a \u2018one woman band\u2019, and that\u2019s not sustainable. How can we get people paid, involve more people eg. through foundations of universities. Paola has been funded for her work through applying for fellowships. One at Harvard, MIT, Mozilla. Little by little gaining more experience and data for strategies that can be applied in different contexts.\n\n\n\n\nChris:\n\nHas been active on the platform. He\u2019s looking specifically at legal frameworks that open new ways to create assets and manage them. A government is an agreement, a company is an agreement. Instruments (eg. shares, debt, derivatives). Nuance between rules of the game and the ball. If you\u2019ve got resources, why do you need money? What sort of agreement or accounting or means of keeping score to do what we need to do. Has been conducting an international review and a historical review. What was here before banks? Commons? No, made proprietary. How has it been enclosed? 75% of money in existence is based on land. Came about through banks lending money for mortgages. Nobody really knows how the system works. How can we use complementary means to get done what we need to do with as little need for the system as possible, bootstrapping.\nGroup for the long term:\n\nHenri:Big botanical garden, bionics. It\u2019s a venue. Alternative building and experimental building. Community living on site. Providing services for the events. POC21.\n\nSohayebNGO Specialized in development. Several projects in mainly empowering people in marginalized and rural areas. Trainings, incubation, skilling up programs. For now doing all of these program for free, but looking for ways to make the program sustainable.\n\nRamiInformal consultant for community garden. The land was going to be sold off, possibly soon. In Oakland gentrification is a big problem, so they are now looking into land trusts. Write a toolkit while doing this, because it is a sustainable strategy.\n\nFabioOpen access health commons. Invite people to take care of their own health. It\u2019s software, mostly a creation process.\n\nBernardWorking on inventions for energy, water, economy. Mainly to have a kit so that everyone can create their own bank, their own money, to finance their own life.\n\nBaderCivil servant in Tunisia ministry of tech. How can we use software development R&D IP for development with Tunisian and African youth. Collaborate between social entrepreneurship and existing state infrastructure.\n\nWinnieopen insulin, a way to put the gains and the production factors that go into producing insulin into the hands of patients or supporting organizations that have the interests of patients in mind.\n\nFrankTrying to buy a large plot of land. Experimental farm, retreat center, skill sharing, residential.\n\nKateA program in Italy where they\u2019re giving building to people under 40 without rent. Similar like Frank and Henri\nMoney or money\u2019s worth? We think of property as a thing. The development model in the UK is that you buy land, let it increase in value and sell it off. Land as a commodity. If you break down land, there are certain elements. First: rights of use (fishing, grow crops). Second: rights to fruits of use of land: who gets them. Mortgages: you\u2019re giving the banks the fruits of the use of the land. Third: right to keep somebody out, exclusion. These three rights can constitute the sharing of surplus.\nWe can easily create agreements that . If you have a piece of land and you put things into it (work, fertilizer, \u2026) and then you get stuff out of it and distribute it. The way that we have been scaling this has been through companies with shareholders. Everything is a cost for shareholders, they don\u2019t share.\nImagine a club where, if you are part of the club, you get the right to live there. It\u2019s going on in London. The club owns the land.\nYou go to a landlord and ask for the rights of use. They put in the land as an investment. And they get a return. You need to do it long term, so that you actually invest in the place (you won\u2019t do that if you are only there for 6 months).\nLimited Liability Partnership. \nA trustee says what will happen, a custodian says what will not happen. Moral rights. Non-dominion: no dominant rights, nobody tells you what to do. It is the right to be able to say no. \nAsset partnerships.\nA club is both open and closed. Anyone can become a member, but it only caters to its members.\n\n\nGroup for personal financing\n\nWith Paola, @Noemi and @Heba Takeaway: ideally you find an angle which helps make some aspect of your work attractive to a funder. This validates the project and you, Once you got in the first time then its easier in the next times.\n\nPaola:  my theory is that collaboration is super expensive. Is should be paid because it is a lot of investment. We can convince foundations or orgs to pay people to collaborate.\n\nHeba: When people have no idea how to make a product, how do you do it?\n\nP: What inspired me is community organising. It happens for the sake of community. Same with collaboration.\n\nThe reason we do it is because we want to, not necessarily for an outcome.You bring your own perspective: you ask questions, how tech and openness and care interact. First try to diagnose what collaboration is possible, we are creating a framework with which we can operate.\n\nQ: What happens when an organisation like ACLU gets empowered through technology? (Data for Justice project). That was a question that starts it, You have the organisation and the community, so you promise to create a framework, That makes the funders to understand that they are creating a tool.\n\nIts also a guide for how to design a project.\n\nHeba: still starting her project, doesnt know how to write a proposal. Working in a hard context in Egypt where its hard for civil society to work. Shes working on her project and not getting paid, but she has a support community which she can rely.Now collaborating with Hazem to write a concept not for the project to create a cycling infrastructure in Alexandria.\n\nShe wants to gather activists, see what they can do and put it out there to the community, then assess. \n\nP: There are urban fellowships to create this. IE Women cyclists scene - your output would be normalizing the attitudes.Friend who was a bicycle strategist in Mexico. The fundable project could also be: looking at how other cities did it.\n\nNoemi: can you hop from project to project, while you are already giving most of your time to a core organisation, similar to a full time job?\n\nQ: What do you think of the civic tech. Civic hacking scene?Paola: worked with or for the Mexico Innovation lab, or Code for America. They try to substitute the government, but the gov doesnt work. So its practical, but its not long term. The gov gets away with problems they dont have to solve, because the hackers do it and do it for free.\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 38786, u'annotation_id': 11889, u'tag_id': 877, u'entity_type': u'post'}, {u'quote': u"nice project!\nFor what I see there are so many valuable initiatives around the world, the main issue is that there's lack of funding for them and the general overload of informations makes it very difficult to understand what is important and what is not.\n\nIf we want to reach a profound change in this society we should aim to create new innovative form of credits that promote pluralities and radical new ideas while giving enough security to people that trace alternative paths.\n\nSharing economy platforms could be used to power these activities because they unlocked a large number of resources that could be redirected towards projects thanks to a crowdaction.\n\nP.s.\nI will probably live for some weeks in the netherlands this summer, let me know if you want to meet!", u'entity_id': 22115, u'annotation_id': 7548, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'cultural projects. But we\u2019re already at the limit of what we can achieve as volunteers. It\u2019s a classic Catch 22 volunteer trap \u2013 we need money to buy us more time, but we don\u2019t have enough time to work on finding money.', u'entity_id': 6427, u'annotation_id': 7547, u'tag_id': 877, u'entity_type': u'post'}, {u'quote': u"We (Access Space) were a minor partner, receiving less than 5% of the project budget - yet one of our clients, who we helped to prototype a key product, has created more jobs than the WHOLE PROGRAMME'S OBJECTIVE. How were we thanked for this? We had our budget cut.", u'entity_id': 14151, u'annotation_id': 7546, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'Hello @James - it looks like our work here in Glasgow has quite a bit in common with your work in Access Space and Makers although we\u2019ve not quite gone digital yet. I agree that publicly-funded activity is limited in a number of ways and we\u2019ve been similarly burned in partnerships in the past. Our organisation has survived a number of cuts and financial challenges and nearly didn\u2019t make it after our EU employability funding came to an end after 7 years in 2012 (though I personally find the employability agenda deeply problematic). We started building a number of diverse income streams after that to create greater financial stability for the future. These have grown to become our trading subsidiary and we are trying to integrate the learning and development work we do with enterprise activities.', u'entity_id': 23520, u'annotation_id': 7545, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u"We'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a \xa0prospect,\xa0I doubt there would be enough that's novel about our work to qualify it as fundable science.", u'entity_id': 26033, u'annotation_id': 7544, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'We did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work.\nIt will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science/engineering\xa0work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next step', u'entity_id': 10742, u'annotation_id': 7543, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'One of my goals is to allow plurality, especially for new initiative is always hard to find funding.\xa0\nAnyway, this is something that needs to be discussed in depth, the nice thing about this is that it will create a perpetual passive funding that could literally enable thousands of valuable projects to reach their goals.', u'entity_id': 23217, u'annotation_id': 7542, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'In general, there\u2019s a tendency for new initiatives to struggle in the initial fundraising. It\u2019s easier to get funded if you are already big or active enough.\nIf you have applied for any grant, you know how competitive these things can be, and\nprobably you understand how the abundances of projects and the lack of funding\ntend to lower the diversity of the ecosystems and sometimes discourage innovative ideas - This doesn\u2019t apply to for-profit start-ups that can rely on other types of financial support (VC, Business angels, etc) -.', u'entity_id': 829, u'annotation_id': 7541, u'tag_id': 877, u'entity_type': u'post'}, {u'quote': u'As a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, C\u0153ur d\u2019Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way.', u'entity_id': 672, u'annotation_id': 7540, u'tag_id': 877, u'entity_type': u'post'}, {u'quote': u'think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS \xa32bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...)', u'entity_id': 29962, u'annotation_id': 7539, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u"Part of the issue is funding. Larger premises or chains do lead to economies of scale and can help with staffing (whereas a single, small institution may need to resort to agency staff on occasion - which can be very expensive). The other side of this is that large operators can seem\xa0to get away with things that a small or single premises operator would not, simply as to rebuke them or suspend their activities would result in chaos for service users, never mind the relationships that develop with a large care provider and a local council or\xa0clinical commissioning group. (I've seen examples of large corporates who provide home care services being inspected and noises being made by staff who complain they are not alloted time to travel between appointments, etc., yet nothing seems to be done, despite the obvious failings. I suspect some in\xa0Government aren't in a position or of a mind to focus on the service users at the moment, but rather see some dubious measures\xa0as essential cost-cutting / profit maximisation on the part of the corporate body. Another point to bear in mind is the connections between certain politicians, financiers, and industry - as with many sectors!)", u'entity_id': 27817, u'annotation_id': 7538, u'tag_id': 877, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 21101, u'annotation_id': 7562, u'tag_id': 880, u'entity_type': u'comment'}, {u'quote': u'In Syria we have an \u2018islamic solidarity\u2019 in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven\u2019t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship. \xa0We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.', u'entity_id': 790, u'annotation_id': 7561, u'tag_id': 879, u'entity_type': u'post'}, {u'quote': u'Card game idea for communication: the others were not present. Guido mentioned that the Diabetes Liga has a card game, worth checking out.', u'entity_id': 7979, u'annotation_id': 7570, u'tag_id': 881, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11649, u'annotation_id': 7569, u'tag_id': 881, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14770, u'annotation_id': 7568, u'tag_id': 881, u'entity_type': u'comment'}, {u'quote': u'The first area of interest is care-related and it focuses on creating assistive technologies for people with disabilities, and on offering them for free (and under open source licences). Among these are games for blind children, which have been developed in collaboration with schools for the blind - they helped us design them, tested and now use them. The process allowed us to bring together blind and non-blind people to work together. These games have more than 3,500 downloads from all around the world, got much media attention - and we constantly get positive feedback from people using them. So we continue developing more games for the bind.', u'entity_id': 528, u'annotation_id': 7567, u'tag_id': 881, u'entity_type': u'post'}, {u'quote': u"Hi @Noemi and @Alberto. Thanks for your feedbacks. In 2014, we started with the positive expiratory pressure therapy for CF children. It was in fact not the best move as the exercice takes about 30 minutes daily, which would require a lot of resources to have interesting games, plus the fact that the exercice is quite strict, so challenging to make it interesting. We then thought about other, more free gameplays, which we have to develop. We are now working on mini-games for asthma, that are about triggers and how to take the medicine. We want to reuse the work done for CF to build short games for aerosoltherapy.\nRegarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved.\nMany learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels. We invite you to subscribe to our YouTube, where we are going to release 15 interviews of what participants learned during the last gamejam. In the next months, we intend to do gamejams in Montreal, Geneva, and possibly Paris and Lima if you d'like to join there or remotely!", u'entity_id': 19731, u'annotation_id': 7566, u'tag_id': 881, u'entity_type': u'comment'}, {u'quote': u"I see cowork spaces and hubs going for gaming nights targeted at youth, but it would look even better if they\xa0opened up the participants' age to include older people - maybe less pc and console\xa0games and more board games? The latter\xa0tend to be more social quicklier. Will keep your thoughts in mind.", u'entity_id': 7467, u'annotation_id': 7565, u'tag_id': 881, u'entity_type': u'comment'}, {u'quote': u'A couple of years ago i participated to a contest called \u20185 voor 13\u2019 that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don\u2019t visit grandma anymore because she is to old\u2026\nFor my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together.\nI grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn\u2019t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I\u2019m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my \u2018m\xe9m\xe9\u2019 stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.\n\xa0\nSo when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii\u2019s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?\nWell you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together.\nAfter presenting this project i finished third and got 500 euro\u2019s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.\xa0 I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.', u'entity_id': 783, u'annotation_id': 7564, u'tag_id': 881, u'entity_type': u'post'}, {u'quote': u'Visualize your own strengths and weaknesses as a finite set of skill points like in a video game. In your short or long-lived life you earned skill points through events and big moments. You gathered your knowledge into one of those categories and how more you collect how more you can handle in that category, but other way around: tackling tasks inside a category you aren\u2019t good is time and energy consuming with an inefficient consequence as a a result.', u'entity_id': 785, u'annotation_id': 7574, u'tag_id': 882, u'entity_type': u'post'}, {u'quote': u'@Alberto gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and caf\xe9s. Still we have collect more but this will happen as soon as we get it expanded. We work on it.', u'entity_id': 16457, u'annotation_id': 7573, u'tag_id': 882, u'entity_type': u'comment'}, {u'quote': u'Interesting story, @Yannick . I play computer games a bit myself, and found myself thinking about how the "intergenerational up-levelling" would work. Would the game need to know your age? And register your grandma\'s as a player? And she would "approve" your up-levelling? Gamers have a long tradition of "cheatsheets", and I can very well see someone logging in as gramdma to get the magic sword. If you (the game designer) fight it, then you get into a mess of identity verification...\xa0\nI wonder if anyone has tried to design games where the gameplay itself\xa0favour intergenerational teams. Imagine a detective game where you\'d need to be familiar with both youth-friendly and older generation-friendly cultural references. These can be quite badass: my mother\'s slightly older cousins, who lived through WW2 at the age of about 10, could tell the weapon from the sound of gunfire, or whether an aircraft was doing reconnaisance or likely to bomb their asses based on the engine\'s whine.\nI would have no idea ho to make it interesting to the young kids, though...', u'entity_id': 20567, u'annotation_id': 7572, u'tag_id': 882, u'entity_type': u'comment'}, {u'quote': u'A couple of years ago i participated to a contest called \u20185 voor 13\u2019 that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don\u2019t visit grandma anymore because she is to old\u2026\nFor my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together.\nI grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn\u2019t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I\u2019m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my \u2018m\xe9m\xe9\u2019 stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.\n\xa0\nSo when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii\u2019s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?\nWell you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together.\nAfter presenting this project i finished third and got 500 euro\u2019s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.\xa0 I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.', u'entity_id': 783, u'annotation_id': 7571, u'tag_id': 882, u'entity_type': u'post'}, {u'quote': u'Hello @Pat , welcome! I have heard much about you from @Nadia , but\xa0I only discovered your post today.\xa0\n\nThe "teaching" in the title of this comment is not a pun with the Irish "teach\xedn", by the way. I was hoping to learn more about building the tiny houses. How do you do it? What is needed to build them? How do they connect with your gardening project? Could you not have made a garden next to a "normal" house? If the West of Ireland is anything like rural Italy, there will be plenty of unoccupied property lying around. Also: what kind of climate is compatible with a tiny house?\xa0\n\nThere is another sense that no pun was intended. I find that teaching (and, reciprocally, learning) is good for the soul, the collective "soul" of the community as well as the individual one. In the hacker community there is a strong orientation to knowledge sharing. It is useful, obviously, but it seems that many people do it because it\'s the right thing to do and because it feels good when done right.', u'entity_id': 9161, u'annotation_id': 12702, u'tag_id': 2067, u'entity_type': u'comment'}, {u'quote': u'Improvement of livelihood through sustainable agricultural \xa0practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan.', u'entity_id': 855, u'annotation_id': 7577, u'tag_id': 2067, u'entity_type': u'post'}, {u'quote': u'"The iot assisted garden" - might be a good fit for Open Science and Citizen Science for more inclusive healthcare. I think Ken will talk to @Winnie about this soon.', u'entity_id': 24984, u'annotation_id': 7576, u'tag_id': 2067, u'entity_type': u'comment'}, {u'quote': u'I volunteer at a community/school garden (Soil Chro\xed \xcdosa) with Transition Galway and was a writer/editor and designer for our \u201cA Vision for Galway 2030\u201d document.', u'entity_id': 812, u'annotation_id': 7575, u'tag_id': 2067, u'entity_type': u'post'}, {u'quote': u'"A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.', u'entity_id': 10361, u'annotation_id': 7578, u'tag_id': 884, u'entity_type': u'comment'}, {u'quote': u"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming.\nWomen are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation.\nThe violence being perpetrated against girls and women it takes on epidemic proportions.\nAnd instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their \xa0life, their well-being.\nWomen who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ...\nWhat are the primary tasks?\n\xa0To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care.\nThe right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee\nTo be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research\u2026.\nMany seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges.\nWomen \xa0demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed\u2026 crippled\nMany studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor,\xa0The whole society has benefits and profit from that, also\xa0economic empowerment of women can give them the strength and the power to fight for their rights.\xa0What is I have to emphasis\xa0totally crazy, to fight for something that is obvious and should be guaranteed.\xa0But since we live in such a country and such a world, which I will say freely that's gone completely crazy.\nThe first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have\xa0to forget that terrible sentence, you're a girl, you you have to let go, you have to listen, \xa0you must be good,\xa0obedient\nWell, \xa0you do not have to do anything\nBe good and obedient and you'll be good and obedient patients\nIf you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default, \xa0you can be scientist, pilot, astroanut, everything you want\nOf course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing, \xa0to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and \xa0works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable\xa0and smart and successful women, because obviously while men are leding,\xa0we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give\xa0positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is \xa0always something wrong , they have to be perfect to be loved because they are \xa0upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie\xa0and \xa0to be good...\nIt is a great theme, and very serious and \xa0requires indispensable\xa0large and big steps to make the change, so we\xa0won't\xa0any more\xa0read about dark statistics or to be a part of it,\nI forgot about inadequate or not existing\xa0 health status of women and treating them, how horrible gynecologist acting,\xa0a large number of cancers that are not detected at time, shame, \xa0when they\xa0give birth listen insults and so on...\n\xa0I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do\xa0because it is not a choice any more it is our obligation.", u'entity_id': 858, u'annotation_id': 7586, u'tag_id': 885, u'entity_type': u'post'}, {u'quote': u"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices \xa0and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing \xa0plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that \xa0expose girls and women to violence \xa0and \xa0HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com\nI will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.\nWith Personal Warm Regards", u'entity_id': 24949, u'annotation_id': 7585, u'tag_id': 885, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 24411, u'annotation_id': 7584, u'tag_id': 885, u'entity_type': u'comment'}, {u'quote': u'work is just too unseen and mostly in underpriviledged jobs, genders to a minimum. Working classes as care classes, that\'s a strange idea that never occured to me:\nEven in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women\'s work \u2013 looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects \u2013 accounts for a far greater proportion of what working-class people do when they\'re working than hammering, carving, hoisting, or harvesting things.\nThis is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers\xa0recently had to explain\xa0to indignant commuters, "ticket takers" don\'t in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused.', u'entity_id': 24339, u'annotation_id': 7583, u'tag_id': 885, u'entity_type': u'comment'}, {u'quote': u'Thanks for sharing the links, from the ministry\'s communication I picked up on something new: "The question of women\'s employment is thus closely linked to the question of the social organization of care work" So the risk is that the more care work you do around the house, the more you risk being paid\xa0less because of inability to take up fulltime work and provide for yourself at an old age..?', u'entity_id': 17209, u'annotation_id': 7582, u'tag_id': 885, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 749, u'annotation_id': 7581, u'tag_id': 885, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 7587, u'tag_id': 886, u'entity_type': u'post'}, {u'quote': u'young men', u'entity_id': 39328, u'annotation_id': 11615, u'tag_id': 886, u'entity_type': u'post'}, {u'quote': u"What didn't work so well was:\n\n\nwhen people spoke in general terms and theoretically/ hypothetically without really feeling the question.\xa0\nwhen people didn't really want to be there", u'entity_id': 6401, u'annotation_id': 12703, u'tag_id': 2068, u'entity_type': u'post'}, {u'quote': u"I grew up in a multi-ethnic society, with children from multiple places around the globe. To me, there is no fear or mistrust in seeing people from other ethnic backgrounds around me. But for my grandparents, there is a lingering Nationalism, a lack of acceptance of 'otherness' - socially, sexually, racially. Brought up in the social strictures of oost-war Britain they reject the social liberalisation that they have lived through. One could argue that they didn't really get to experience the full force of the social liberalisation. Many married young and had children young, many women stayed as full-time child carers and had little interaction outside of the home. Many had large families in the models of their parents before them. Their children have experienced the social liberalisation fully (sexual revolution, oral contraceptives, relaxation of the divorce laws), they grew up with a few non-white faces around them because of Windrush (immigration to UK from newly Independent West Indies) or from Indian sub-continental immigration before and after Partition. Their children (my parent's generation) were also the first people to truely benefit from the way that membership of the EU opened up travel around Europe and the North African coastline. They experienced the realities of live in other countries and these experiences changed how they think. My grandmother has never been outside the UK in her entire life.", u'entity_id': 27819, u'annotation_id': 7590, u'tag_id': 888, u'entity_type': u'comment'}, {u'quote': u"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that\xa0 get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)?\n\nIf I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and\xa0 3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based\xa0 research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?", u'entity_id': 23568, u'annotation_id': 7592, u'tag_id': 890, u'entity_type': u'comment'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.", u'entity_id': 863, u'annotation_id': 12704, u'tag_id': 2069, u'entity_type': u'post'}, {u'quote': u'However, we opened this garden in a situation of conflict, an object lesson for everybody on gentrification and the ruthlessness of real estate speculation: we did not put the politics into it, they did, and everybody has learned the lesson.', u'entity_id': 21382, u'annotation_id': 7597, u'tag_id': 892, u'entity_type': u'comment'}, {u'quote': u'We are the families of the "Oltrarno", the other or wrong side of the Arno river in Florence, Italy.\nFacing a tough challenge - surviving in the Disneyland of the Renaissance, as a community.\nRight behind the Carmine church, where the Renaissance was born,\xa0families of the most varied background - both traditional and immigrant - run a garden which was donated to the population of the district by the American Red Cross in 1920 and has since been largely seized by a real estate speculator.\nA cross-section of ordinary people of every kind, who are beginning to work together to develop new ways of survival, friendship and beauty\xa0in an era where the "state" is no longer the key actor.\nAs we discover our own needs, our strength, the power of working together, we find that we have a whole world of prospects before us, something much larger than the garden we started out with.\nWe are here to listen and to learn, and of course we would be glad to show you around our side of Florence, should you ever drop by!', u'entity_id': 766, u'annotation_id': 7596, u'tag_id': 892, u'entity_type': u'post'}, {u'quote': u'From 2012\xa0onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn\u2019t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop \xa0further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d\u2019Accroche (part of the project V\xe9lo M2, explained here) in that neighbourhood, hoping to bring them some resilience.', u'entity_id': 520, u'annotation_id': 7595, u'tag_id': 892, u'entity_type': u'post'}, {u'quote': u'The neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in.', u'entity_id': 804, u'annotation_id': 7594, u'tag_id': 892, u'entity_type': u'post'}, {u'quote': u'geo-localization technologies', u'entity_id': 34541, u'annotation_id': 12289, u'tag_id': 2500, u'entity_type': u'post'}, {u'quote': u'host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources.', u'entity_id': 14308, u'annotation_id': 7603, u'tag_id': 895, u'entity_type': u'comment'}, {u'quote': u"Yes, that's it. Taking it further though, would be to create rural/nature situations where healthcare professionals can rejuvinate and connect with people from different professions. And yoga, nature based activity and arts for teens in rural settings. There is already a will for this to happen from For\xf3ige, as a means to curtail troubeld behaviours. ..and the elderly, we especially need alternative services as our elderly population grows.", u'entity_id': 18305, u'annotation_id': 7602, u'tag_id': 895, u'entity_type': u'comment'}, {u'quote': u'I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Dina', u'entity_id': 24581, u'annotation_id': 7604, u'tag_id': 896, u'entity_type': u'comment'}, {u'quote': u'I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Dina', u'entity_id': 24581, u'annotation_id': 7606, u'tag_id': 897, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 7605, u'tag_id': 897, u'entity_type': u'post'}, {u'quote': u"Makers in residence are supposed to deliver and publish on the web the output of their experience at WeMake.\n\nFinding the right way to record and develop a innovative and open experience seemed therefore a matter of concern in designing the opencare MIR program.\n\nDuring the last weeks GitHub, a social network for developers, became a obliged point of passage for some people at WeMake.\n\nGithub allows to create repositories, communities and webpages (gh_pages), among the main features. Putting a project on github makes possibile for members to contribute remotely and for anyone to view and download it.\n\n\nrite passage 2.jpg1424x1068 984 KB\n\n\nNot only makers, but some service designers involved had to take class on GitHub as well.\n\nThe idea was to instruct participants and support them to create by github repositories and pages.\n\nAlthough github is very known and used, not everybody there at WeMake is familiar with it.\n\nI've been knowing Github for some years, but is interesting to follow conversations and see how different persons see and use it.", u'entity_id': 868, u'annotation_id': 12707, u'tag_id': 898, u'entity_type': u'post'}, {u'quote': u"Actually, I just started\xa0volunteering there some weeks ago. For their Spring Opening Fest, I helped set up and supervise a little stall for people to make Stockbrot. At first, it was us preparing the bread for the guests and then they would cook it over the fire. However,\xa0some of the refugees that were there were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily\xa0and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough.\xa0Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped\xa0you a little!", u'entity_id': 26945, u'annotation_id': 7608, u'tag_id': 899, u'entity_type': u'comment'}, {u'quote': u'Since they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).', u'entity_id': 26014, u'annotation_id': 7607, u'tag_id': 899, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 780, u'annotation_id': 12709, u'tag_id': 2071, u'entity_type': u'post'}, {u'quote': u'Medic believes that health is a human right. We know that global health disparities around the world are vast, and it\u2019s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact.', u'entity_id': 564, u'annotation_id': 7609, u'tag_id': 901, u'entity_type': u'post'}, {u'quote': u'#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.\xa0\nreHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming.\nOur beneficiaries are all those people who needs to have an experience feedback concerning the hand movements.\nreHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance.\nReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.\nreHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.\xa0\nTo define our project we didn\u2019t started from a theoretical concept. We started to make the prototype and to test it.\xa0\nThe development of reHub working prototype has been at the heart of our design process.\nAs described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design.\nAfter testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove\u2019s collected data through a graphical interface and cartesian charts.\nWe are looking for our final user(s), who will try our product and help us develop different options:\n\nSport\nGaming\nEducational\nMedical \xa0\n\nWe want to built a community and start a business strategy.\nWe will publish tutorials, kits and software to make your glove.\nEverything to improve the glove solution.\nWe want to develop 4 different kits to sell:\n\nwith single sensors\xa0\nonly the electronics\nglove tailored\ncomplete of all\n components\n\nWebsites & Social\nwww.rehub.pro\nwww.facebook.com/rehubglove', u'entity_id': 33751, u'annotation_id': 7610, u'tag_id': 902, u'entity_type': u'post'}, {u'quote': u"a late welcome from my side. It's amazing to read about what you guys are doing. wanted to know more from you specially about applying the sociocracy model, what challenges did your group face, how do you think this can work within larger groups.I am interested in knowing more about your governance model in practice, I am trying to apply sociocracy with my group in Egypt, mainly as a governance model we are not living together ( till now ) \n\nnot sure if you are connected to this experiment days cohousing network, there are different cooperatives and intentional communities in Germany, would be nice to exchange knowledge in Case you are not connected.  ( will be happy to connect you together ) \n\nalso pinging @amiridina @Heba @Yosser @m_tantawy , check this out as an existing model and let's see how we can learn in the openvillage in the southern Mediterranean region.", u'entity_id': 38255, u'annotation_id': 11717, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u"Hey @johncoate and @Gentlewest, I just saw these last messages of yours and I am\xa0sorry I haven't replied earlier. @johncoate Solidarity can arise in many ways and forms, and both formal associations and informal collectives have offered amazing solidarity solutions in many ways. For me what matters is not formality or non-formality,\xa0but \xa0the level of participation and the style of governance.\xa0In our case, the R2R call center is an informal collective, supported by the open global cooperative ecosystem of FairCoop on the global level, which is also a self-organised project with a global community involved. @Gentlewest thank you for the nice words, I couldn't agree more.", u'entity_id': 29081, u'annotation_id': 7620, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u"I am also curious about the connection between burnout and governance structures. If these are designed well, could they not act to distribute the work (and the stress) more evenly? I'll need to reflect on and read more of the links in the thread above to see whether I agree that these are an 'attention sink'.", u'entity_id': 23537, u'annotation_id': 7619, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u'To skip to your interests @asimong , they are very rigorous in governance, and have a system where each person\xa0in the organisation has a steward\xa0who is sort of in charge of their wellbeing: they call it the stewarding circle.', u'entity_id': 19718, u'annotation_id': 7618, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u'thanks for the reply. i totally understand the wish do not get mixed up with organizational structures. and even though i don\'t like the word "governance" too much, i think for a long term survivale of projects, and also to keep them transparent and open, there should be next to the possibility to do also some general rules and mechanism. i also refer here to the idea of the commons, that are often practically related to very clear rules (including sanctions, and instruments to deal with conflict). I think Jo Freemans "the tyranny of structurelessness" (http://www.jofreeman.com/joreen/tyranny.htm) is still - after 40 years -\xa0 relevant, and i also enjoyed reading David Graebers "Utopia of Rules" where he also refers to Freeman.', u'entity_id': 19633, u'annotation_id': 7617, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u"thanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.", u'entity_id': 12111, u'annotation_id': 7616, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u"I'm curious, how did you learn to deal with conflicts as your network expanded so much over the years? Do\xa0you have a governance structure in place that helps you\xa0work out solutions\xa0inside the community: for example if there are differences of opinions between\xa0gardeners, beekeepers, neighborhood\xa0conveners,\xa0the association members and various groups stewarding Prinzessinnengarten. After all, you only have a limited\xa0number of vegetable beds, right?", u'entity_id': 10375, u'annotation_id': 7615, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u'governance', u'entity_id': 8137, u'annotation_id': 7614, u'tag_id': 905, u'entity_type': u'comment'}, {u'quote': u'You say impact as scale needs government, and gov support is easiest achieved when having international backup. Is international partnerships/ funding/ media something you are staying away from, intentionally, or have you tried and failed? Or maybe you find it very expensive to get that kind of exposure?', u'entity_id': 37423, u'annotation_id': 11801, u'tag_id': 1929, u'entity_type': u'comment'}, {u'quote': u"What I have seen from my exposure to a small institution is caring staff who are doing a good job and have good, close relationships with their service users. However, they are often distracted or overwhelmed by\xa0an ever-changing regulatory framework, as happens in other sectors such as teaching. Ultimately I would like to see the funding from lcoal councils topped up by central government, and this be accepted as the only way to provide decent care. More flexibility from the regulatory body would also help - allowing for more differences in care provision, especially in smaller, more intimate homes; as I've mentioned this does seem to be unlikely given the current standardised, bureaucratic, regulation and\xa0inspection by\xa0checklist...", u'entity_id': 27817, u'annotation_id': 7639, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'At the same time, the ability of government-funded institutions to meet those needs is diminishing. They lack the resources, the responsiveness and the political will to deal with the population\u2019s increasingly complex care needs.', u'entity_id': 758, u'annotation_id': 7638, u'tag_id': 906, u'entity_type': u'post'}, {u'quote': u"@Alberto That is a beautiful example of this harmful shift towards 'control' and 'planning', inspired by uncertainty and distrust, while we should be shifting towards a dynamic\xa0interplay between 'noticing' and 'steering', inspired by best estimates and trust.\nI do think that institutions and companies are (perhaps unknowingly)\xa0looking for these qualities\xa0when you see trends in expectations set by job offerings, although they use different words. Yet ironically, those companies and institutions seem to lack the 'noticing' and 'steering' qualities to realise what they are actually\xa0looking for and thus be good at recruiting the people who have what it takes.\nYou have a good point about isolation and depreciation of skill sets. Keeping your workforce up to date entails both education and turnover.", u'entity_id': 30485, u'annotation_id': 7637, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'@WinniePoncelet I completely agree with your point of view. The political process (and media) focus on high-level strategies, but the greatest impact reforms would come from reforming the govt\'s operating system: quite simply, the affordances of people therein. Example: my sister works for an Italian municipality called Modena. In a drive to contain costs, some genius passed an internal regulation that employees travelling on business ("missions", as they are known in the public sector) need an authorization from the highest political level (giunta\xa0in Italian, which means the mayor and her close collaborators). This is such a hassle that in 99.9% of the cases managers renounce. Employees do not get to go to conferences. As a result, over time the whole workforce becomes isolated and its skillset depreciates and withers.\xa0\nChanging this does not require a strategy. A workforce that stays up to date would help any mayor, be she conservative or progressive. It does not require changing the law, either. The city council could simply vote a resolution allocating a modest budget that each employee can use to go to conferences and events they are interested in. This would have a massive impact, in my opinion. Maybe @Franca has an idea of how these decisions are made (or, in the case of Modena, not made).', u'entity_id': 30444, u'annotation_id': 7636, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'These words are the preface for my MBA thesis for which I had to interact with Greek officials -and hence got a first hand experience of the stagnant and chaotic ways of its bureaucracy.', u'entity_id': 559, u'annotation_id': 7635, u'tag_id': 906, u'entity_type': u'post'}, {u'quote': u"My own experience:\xa0I contacted the city anyway a few months back. I mailed with the responsible politician and she directed me to the civil servant at the bottom of the 'food chain'. We met, she was impressed by our project and clearly wanted to help. She promised me to take the message back up the food chain, but assured me it would take a while, and keep me updated along the way. The department got restructured, so this was slowing things down.\xa0Fast forward 2 months, no news, and our project is already in a different stage. Time flows differently for the government,\xa0I hope people\xa0age\xa0slower as a perk for working there.\nA government\xa0platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.", u'entity_id': 28966, u'annotation_id': 7634, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 17309, u'annotation_id': 7633, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14850, u'annotation_id': 7632, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'"Communication with the population in Germany is currently not part of emergency response exercises. In the competent authorities, there are in most cases no crisis communication concepts. Communication on social media has so far only been inadequately addressed." (this comes from the radiation guys who are somewhat important historically).', u'entity_id': 13499, u'annotation_id': 7631, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.', u'entity_id': 550, u'annotation_id': 7630, u'tag_id': 906, u'entity_type': u'post'}, {u'quote': u"Why weren't we ready? Why didn't governments, NGO\u2019s and independent groups cooperate? And when they did, what happened?", u'entity_id': 550, u'annotation_id': 7629, u'tag_id': 906, u'entity_type': u'post'}, {u'quote': u'At the same time citizens were either sitting under tarps in the rain, complaining about a lack of water (while not catching the rainwater!), or standing in very long lines at the government water truck that could only serve 1 person at a time because no one had thought of a manifold.', u'entity_id': 19228, u'annotation_id': 7628, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u"The French government's\xa0reluctance to acknowledge the legitimacy of the Calais camp\xa0has created\xa0a\xa0vacuum.\xa0So,\xa0NGOs have struggled to work in that area. Because they cannot work\xa0under license, they cannot reduce\xa0the suffering there, except on a micro\xa0scale.", u'entity_id': 19227, u'annotation_id': 7627, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u'As s municipal councilor, I am in contact with local authorities. Sadly the Municipality responded very poorly, compared to what it could do. Same goes with the Ministry of Immigration Policy. We talked to the consultants, they appreciated our effort, but there was no practical result.', u'entity_id': 737, u'annotation_id': 7626, u'tag_id': 906, u'entity_type': u'post'}, {u'quote': u'local government is burocratic-politics and slow, almost no budget...', u'entity_id': 24390, u'annotation_id': 7625, u'tag_id': 906, u'entity_type': u'comment'}, {u'quote': u"Finally, Malagasy people cannot lean on their own government, it doesn\u2019t have enough budget to overcome this or: the budget is going somewhere else which is more important, like towards health. Private school is plenty even if some of them don't have the right character as a normal school: no playing ground, no gates... Parents like it because the teaching method is quite modern and up to date, teachers are quite professional. \xa0Some of those private schools belong to someone on the Government. The good thing is that teachers in private schools are at least able to do their job smoothly and actually finish school programs.", u'entity_id': 746, u'annotation_id': 7624, u'tag_id': 906, u'entity_type': u'post'}, {u'quote': u'First when I asked her to give a short opinion about the bottom up imitatives organizing care related projects she responded: I only believe people can give care when it comes from love and friendship. All other forms need to be done by the government to be effective. I was really surprised by this ballsy argument so I invited over for a drink on the hottest day of the year (35\xb0C!) and we had a tomato juice and a great conversation.\n\nWe dived immediately into the subject. Care is a government issue for\xa0 her that isn\u2019t at all taken care (pun intended) of. Why does the government give as much power to the pharmaceutical industry for example? Why can Nestl\xe9 become the number one partner of a government organization called \u2018Kind En Gezin\u2019 that helps parents of new-born through the first year? For her our role as activist and change makers is to put pressure on the government to make change on a big scale possible.\nI explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn\u2019t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government.\nBut Ginette isn\u2019t the person to only be sceptic and give critic towards ideas. She likes finding solutions. So before I explain her the principle of the workshop we talk a bit further on the big problems ahead. For her everything can be put into three categories: poverty, elderly care and work ethics. Poverty makes it impossible to take care of each other; it is a vicious circle that is difficult to get out of. Even with the best projects, people without money will not get towards it. Elderly care is also a big problem in European countries, care became profit and it is all about efficiency. Only a rearrangement about how we look at elderly care can get us out of this problem. Finally there is the way we look at work and how it makes us sick: burn out is one of the biggest epidemics of this century and involves pulls the whole family downwards. Not one political party is discussing these problems on a larger scale and that is problematic for her. The resources are there, but the unwillingness of changing is bigger. Politicians aren\u2019t trained to be vectors of change; they are the ones that bring continuity. It\u2019s the civilians that need to push the change and politics to implement it.\nDark times ahead? Maybe, but this discussion made me think more clearly about the workshop and what we need to take notice of when bringing care-project together. Like within the makers movement it is important to find a balance between corporate and counter culture partners, within care it is also important to have an open approach towards policy makers. Yes we are in a ruff path at the moment, and trust is at an all time low towards politicians. But therefor it is the moment to open our arms to welcome them towards new ways of organizing care. We need much more and easier collaboration between projects. We need especially that knowledge of the government to tackle complex problems with multiple partners. We need to take them by the hand and show them what there is possible within an open care system\nThe discussion I want to open towards the community is: Is involving the policy makers important, or will it be obsolete in the future? What kind of dialogue can care taking projects take towards it?', u'entity_id': 726, u'annotation_id': 7647, u'tag_id': 907, u'entity_type': u'post'}, {u'quote': u'Idea is about helping blind people about the outside world\u2019s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API\u2019s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)', u'entity_id': 770, u'annotation_id': 7649, u'tag_id': 908, u'entity_type': u'post'}, {u'quote': u'PocketFinder\xa0\nReceives GPS location data from multiple satellites. PocketFinder sends GPS location as frequently as every 2-minutes through cellular network. Cellular carrier sends encrypted data to PocketFinder servers. End-user logs in to account using smartphone, tablet, or computer. End-user can manage everything for PocketFinder using smartphone. When PocketFinder goes in or out of zone, Alert is sent to end-users via text, email, & push notification.\nRevolutionary Tracker\nhttp://www.revolutionarytracker.com/', u'entity_id': 777, u'annotation_id': 7648, u'tag_id': 908, u'entity_type': u'post'}, {u'quote': u"I love this. Shifting the viewpoint to highlight the beauty and variety of people's different abilities. It really does seem like a win-win idea. Your photo here looks so modern and stylish, but when I go to your website it falls a little bit flat in interesting content. The concept though is so beautiful.\nI am a graphic designer, I can imagine a really beautiful brand overhaul to reflect this innovative project and an open source toolkit made for people/social entrepreneurs/investors\xa0who would like to implement discovering hands.", u'entity_id': 14838, u'annotation_id': 7650, u'tag_id': 909, u'entity_type': u'comment'}, {u'quote': u"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe.\nFor OpenVillage session(s) \u201cfor me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels\u201d", u'entity_id': 6360, u'annotation_id': 7658, u'tag_id': 910, u'entity_type': u'post'}, {u'quote': u'What I am interested in when talking about communication is how it leads\xa0to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown\xa0of Ghent is pretty bad.\nIt might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or\xa0moneywise) aspect. Your work as an artist is potentially a\xa0great help.\nHas your work on making complex issues around\xa0bodies of water acessible somehow contributed to citizen-led research?', u'entity_id': 21041, u'annotation_id': 7657, u'tag_id': 910, u'entity_type': u'comment'}, {u'quote': u'Anyway, this part of my story is not what I\u2019m here to write about.\nI\u2019m here to write about emerging opportunities we have to finance bottom up initiatives, that are not exploiting, related to a viable strategy to transform existing sharing economy platforms in a mechanism to perpetually fund non-profit projects and grassroots initiatives.', u'entity_id': 829, u'annotation_id': 7656, u'tag_id': 910, u'entity_type': u'post'}, {u'quote': u"Now, as the demos has been neglected and their voice hijacked during the last referendum, it's time to accept, at least tolerate, widespread civil disobedience that will drive the movement. 62% that disagreed has been silent so far, but it will have to speak soon. Even more, what seems to be an alternative idea, is not alternative anymore there - it's the only way out. Greece is exploring the open data tools and sharing knowledge, prototyping new was of accountability, transparency, decision making. And here the health and care appear again. Pavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece. These are the ways in which delivering health care has changed, in which social organization has challenged the systemic shortcomings. From those experiments and pieces emerges a complex, wide image of more inclusive future. It is built on the exchange of ideas and practices in an open manner. It rethinks the way we deliver care in a more decentralized way, more concentrated on prevention. It reframes urban food systems by educating people on the impact of what they eat on their health. Contemporary lifestyle jeopardizes 50 years of development in the health sector - food related diseases, new viruses, climate change, they all have a huge, negative impact on the quality of our lives. Technology and science, accompanied by open data and sharing, can prevent disastrous effects of those phenomena.", u'entity_id': 704, u'annotation_id': 7655, u'tag_id': 910, u'entity_type': u'post'}, {u'quote': u'FairCoop is, in fact, a lot of projects with a unifying mission behind all of them: to build alternative, grassroots-driven economy, which will be participatory, fair and belong to the people. All of the members of our global collective want to see that happen.', u'entity_id': 741, u'annotation_id': 7654, u'tag_id': 910, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 18649, u'annotation_id': 7653, u'tag_id': 910, u'entity_type': u'comment'}, {u'quote': u'"grief is a form of disability..."\n\nI think this is a very interesting suggestion\xa0Patrick, that may benefit from great insight.\n\nI also read a very interesting acticle about how it is often harnessed by communities to help deliver change as well:\n\n\n  \n    slate.com\n  \n  \n    \n\nLGBTQ Activists Have Always Turned Grief Into Political Action. After Orlando,...\n\nIt was a Tuesday, over a week after the killings, when they finally opened the immediate area around Pulse to the public. The June 12 massacre at the O ...\n\n  \n  \n    \n    \n  \n  \n\n\n\nWell worth a read', u'entity_id': 23507, u'annotation_id': 12710, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'In speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability...', u'entity_id': 19688, u'annotation_id': 7671, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing\xa0 exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.\nAlso, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.", u'entity_id': 29079, u'annotation_id': 7670, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'... if @ybe has found evidence of "digital grieving" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...', u'entity_id': 27820, u'annotation_id': 7669, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'It\'s such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of "distance" such as this one helpful for handling the feelings. And for sensitising others/ building literacy around how to help/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...', u'entity_id': 26051, u'annotation_id': 7668, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever "has not moved on", is "affecting others", is "bothersome" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.', u'entity_id': 25204, u'annotation_id': 7667, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'Thanks for this. I suffered a loss many years ago and couldn\'t understand the reaction of the people around me. It was if they allowed me a month or two to "get over it" and then I was expected to move on. Some good friends couldn\'t bring themselves to mention the dead person\'s name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone\'s relief it seemed. I remember crying in front of my brother a few months later and he didn\'t know how to cope. But he hadn\'t been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.', u'entity_id': 24145, u'annotation_id': 7666, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'I am definitely not young anymore, and I guess I am still moving within the paradigm of "mourn, then move on". Actually, my understanding is that you mourn exactly to\xa0make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.', u'entity_id': 20691, u'annotation_id': 7665, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the\xa0digital\xa0platform of social media (they pay less attention to the\xa0public\xa0nature of some of these platforms).\nMemorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.", u'entity_id': 11904, u'annotation_id': 7664, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn\'t go to the funeral: it still feels surreal, like she might show up at any time, and the "active" facebook account isn\'t helping.\nI am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else\'s death\xa0feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.\nWhen I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch "We Live in Public"? I did many years ago and it has definitely shaped how I feel about social media.\nUsing Social Media more conscienscously....mmm I don\'t know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based "fast" media. I ask myself what effect this has on the dynamics of grief, which are slow and\xa0somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature.\nIn my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in\xa0Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other\xa0rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief\xa0strikes, the individual is embedded in a nurturing local community that can help them heal.\nMy two cents..\nI don\'t know if it relevant to your work', u'entity_id': 8509, u'annotation_id': 7663, u'tag_id': 912, u'entity_type': u'comment'}, {u'quote': u'Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites?\n\nDeath has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person\u2019s final days, parting words and gratitude from the deathbed, captures of assisted suicide and \u201cright to die parties\u201d, and families commemorating the deceased.\nThese experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways \u2013 new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated.\nResearch has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to \u201cDeath Studies\u201d.\nFor instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media.\nAs an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces.\nBut\xa0just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group\u2019s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as \u201ccollective effervescence\u201d. This is \u2018aftercare\u2019, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of \u2018mutual aftercare\u2019. Young people seem to be doing similar things in digital spaces, and I wanted to find out how.\n*\nBeing a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of \u201cholding space\u201d for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began \u201cdeep-liking\u201d my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal \u2013 knowing how to approach someone in grief on social media or how to express grief on social media is not actually \u201ccommon sense\u201d. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.\nI was both a young person managing grief in digital spaces and an ethnographer invested in understanding everyday practices through intimate anthropological inquiry. To do this, I conducted personal interviews with young people who self-reported using digital media (i.e. the internet, social media, devices and artifacts, non-analogue spaces) to manage their grief. I started with friends in my sister\u2019s social groups, made open calls to undergraduates in local universities, and amassed informants via snowball sampling.\nI wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched.\nI learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.\n*\nThe need to understand young people\u2019s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or \u201ccare for the living\u201d. In other words, despite social workers and counsellors preaching the value of \u201ccare chains\u201d, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.\nAnother doctor reported seeing an increasing number of young patients in their late teens or early-to-mid twenties. Sorrowfully recounting a memorable incident in which her young patient instructed her to post a specifically-worded status update on his Facebook after death, she came to realize that young people deeply valued their digital estates as platforms to communicate gratitude and farewells even on their deathbed. In a handful of other instances, young patients requested for their doctors and counsellors to add them on Facebook or to read their blog in order to access sentiment they felt incapable of articulating in person, in physical spaces, via traditional media\nDespite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they \u201cplay by ear\u201d. Most staff do \u201cwhat feels right\u201d based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come.\n*\nHave you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you?\nWhenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways?\nHow can we use social media more conscientiously so as to create spaces for mutual aftercare?\xa0What can we do for each other in digital spaces whenever a global grieving event occurs?\nWe would love to hear from you.\n*\nThis article was written by Dr Crystal Abidin for OpenCare Research, Edgeryders. Crystal can be contacted at wishcrys.com. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.', u'entity_id': 548, u'annotation_id': 7662, u'tag_id': 912, u'entity_type': u'post'}, {u'quote': u'. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.\n*', u'entity_id': 548, u'annotation_id': 7672, u'tag_id': 913, u'entity_type': u'post'}, {u'quote': u'Somatherapy in particular also emphasises the importance of group work as part of building a community of solidarity and support in the face of potentially oppressive political situations; moving beyond reliance on external care to develop personal and political assertiveness.', u'entity_id': 13679, u'annotation_id': 12711, u'tag_id': 2073, u'entity_type': u'comment'}, {u'quote': u'We made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called "Fai la spesa per la tua scuola" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating.', u'entity_id': 804, u'annotation_id': 7681, u'tag_id': 2073, u'entity_type': u'post'}, {u'quote': u'The proof came in May 2011 and the infamous \u2018indignation\u2019 or \u2018occupy the squares\u2019 movement. I was there from the very first day, and although it was very amateuristic and problematic in various levels (and has been widely exploited for political gain) still, it was a strong, life-changing experience for most of us involved. I had never before (except from history books) seen Greeks come together in such ways and with such plurality and diversity. God-fearing pensioners working alongside young budding anarchists; apolitical housewives and disillusioned political-party members, all stepping out and taking initiative, organising, sharing openly their feelings and their food, showing solidarity, standing hand-in-hand to face the teargas and police brutality... The zombies had a heart!', u'entity_id': 559, u'annotation_id': 7680, u'tag_id': 2073, u'entity_type': u'post'}, {u'quote': u'In Syria we have an \u2018islamic solidarity\u2019 in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven\u2019t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship. \xa0We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.', u'entity_id': 790, u'annotation_id': 7679, u'tag_id': 2073, u'entity_type': u'post'}, {u'quote': u'This is a fascinating project. \xa0I have alerted a close friend, an American journalist who has done important radio and print reporting on the refugees in Greece, to come have a look at this topic becfause of this specific project and because of the networking going on in this conversation.\nOne question: by "solidarity" do you mean a formal association or something more loosely arranged through a kind of self-identification?', u'entity_id': 26053, u'annotation_id': 7678, u'tag_id': 2073, u'entity_type': u'comment'}, {u'quote': u'What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.', u'entity_id': 15996, u'annotation_id': 7677, u'tag_id': 2073, u'entity_type': u'comment'}, {u'quote': u'Strong solidarity networks already exist within the cities, in which teams of lawyers, doctors, translators and networks of families offering hospitality in their homes, are offering voluntary support and practical solutions, whenever needed.', u'entity_id': 792, u'annotation_id': 7676, u'tag_id': 2073, u'entity_type': u'post'}, {u'quote': u'In conclusion, the refugee crisis gave rise to a strong solidarity network and also an opportunity for local communities and the society in total. An innovative strategic plan seems to be a necessity, in order to coordinate and manage all the available resources successfully.', u'entity_id': 550, u'annotation_id': 7675, u'tag_id': 2073, u'entity_type': u'post'}, {u'quote': u'At the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I \'m trying to solve the problem with an idea called "smart boxes" (difficult to explain at the moment). I don\' t know if there\'s something out there that can help. This is why I\'m here...', u'entity_id': 17482, u'annotation_id': 7674, u'tag_id': 2073, u'entity_type': u'comment'}, {u'quote': u"This all also reminds me of how important it has been in recent years that people with 'non-ordinary' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the 'normals' about their own unique experiences:", u'entity_id': 29955, u'annotation_id': 7673, u'tag_id': 2073, u'entity_type': u'comment'}, {u'quote': u'I am a co-founder of Cos\xe1in. A wellness centre based in the city. Cos\xe1in supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cos\xe1in is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering:\n\n\nRecovery education\nRecovery through creativity\nPeer support', u'entity_id': 562, u'annotation_id': 12714, u'tag_id': 915, u'entity_type': u'post'}, {u'quote': u'They can be applied efficiently in a group setting - rather than waiting their turn to speak, everyone engages in the practices at once.', u'entity_id': 13679, u'annotation_id': 12712, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 7693, u'tag_id': 915, u'entity_type': u'post'}, {u'quote': u'@Noemi @Sharon\xa0Interesting topic- thank you @Sharon for sharing. my background is in clinical psychology and International Business so this is coming from a different perspective. There are substantial benefits to group therapy, in addition to human and contact and the openness of being completely vulnerable. Too often, there is a stigma attached and people don\u2019t want to share their experience and rather keep in within. \xa0Group therapy helps realize you\u2019re not alone. Many patients enter therapy with the disquieting thought that they are unique in their situation, that they alone have certain frightening or unacceptable problems and thoughts.', u'entity_id': 26061, u'annotation_id': 7692, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u"You say\xa0some people find the idea of a group therapy unsettling. I am one of those people. It's not the sharing with strangers or\xa0the speaking up. I could even live with\xa0the religious connotations, though I have a light allergy to most things that involve ritual. I think the reason is the lack of richness I experience in these group interactions. I find one on one conversations\xa0or reading people's stories like yours\xa0much more rewarding.\xa0\nHowever, when I went through a darker period, it was also a group of people that helped me get out. It was a series of stories and great conversations, offline and online, one person at a time. Most of them will never meet each other.\nDefining what constitutes a community, a group, or what is just\xa0collection of individuals that share a friend is not the point.\xa0I guess you could say that the form the group or community takes differs for everyone. Or that the healing process is about meaningful interactions with others, however that may work for you. Helping others is an underrated aspect of this.", u'entity_id': 22611, u'annotation_id': 7691, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22093, u'annotation_id': 7690, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11421, u'annotation_id': 7689, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'If you Google "mental health support group" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I\'m missing something). \xa0If you add "online" to that you still get relevant results, though far fewer.\nMy question then is, how would what\'s being described, or at least hinted at, here be different or perhaps better than what is already going on. \xa0Or, how can the exisiting activity be supplemented or improved? \xa0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources?', u'entity_id': 24665, u'annotation_id': 7688, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'There\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.', u'entity_id': 18565, u'annotation_id': 7687, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'There is a huge amount of trauma recovery material and contexts for group psychology that I do not know about. It is challenging terrain. As much as it\u2019s essential to tread carefully, it is also necessary to create. The outpouring of emotional pain, anger and concern after the American election makes clear a need for strong communities of action and bold ways for participating in new stories. As worrying as is the prospect of making mistakes around mental health, the more worrying prospect is not creating networks to meaningfully connect up alienated, isolated or suffering individuals. Local actions, online networks and communities are all growing this November: each network has a different focus. Involving digital technology to reimagine group psychology and care (beyond Facebook) is just one of the potentials to help these evolving networks support themselves.', u'entity_id': 553, u'annotation_id': 7686, u'tag_id': 915, u'entity_type': u'post'}, {u'quote': u"Group therapy is a quite common part of\xa0 a therapy programm in clinical setting (psychiatric hospitals). What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope better with traumatic events in our lives and in the world. We need to talk about trauma and pain more openly. We need to adress trauma and pain more directly, not only in the setting of a psychotherapeutical process.", u'entity_id': 11020, u'annotation_id': 7685, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'Eventually I bought a bus. My very first tour this week goes to Ghent, where I already have connected with potential participants. It will be a chance for me to see in what ways I can connect with groups. How to talk to people about trauma? How to equip them with knowledge and capacity to deal with their own experiences? And what could \xa0be a possible model for sustaining the project, as I really want to go far with my tour, reaching the Balkans, Greece, visit communities out there. Ultimately, I\u2019d also like to volunteer in refugee camps and serve with my knowledge and experience there (I do work in an asylum center in Belgium once a week).', u'entity_id': 740, u'annotation_id': 7684, u'tag_id': 915, u'entity_type': u'post'}, {u'quote': u"I am curious as any previous attempts of dealing with trauma in groups. I know nothing about psychotherapy, but I do recall that this problem was met by army psychologists in wartimes. Too many traumatized soldiers, not enough therapists. Therapy had to be done in groups (and here is where Wilfred Bion's intellectual journey starts) . Has this stabilized into standard practice?", u'entity_id': 7567, u'annotation_id': 7683, u'tag_id': 915, u'entity_type': u'comment'}, {u'quote': u'Growing Livlihoods Program', u'entity_id': 35053, u'annotation_id': 12179, u'tag_id': 2382, u'entity_type': u'post'}, {u'quote': u"In your theme, I am most curious about how communities which nurture those enabling conditions can move on to leverage them into bigger arenas (Bernard's tales from Galway, or the incredible potential of @Woodbinehealth ), namely\xa0how care collectives can, in time and with due iterations or healthy growth,\xa0become institutions, if that word can be used..", u'entity_id': 19609, u'annotation_id': 7694, u'tag_id': 916, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11135, u'annotation_id': 7695, u'tag_id': 917, u'entity_type': u'comment'}, {u'quote': u'Who wants to join us for the biohackathon? We can get 4-5 people together. You can reply in the thread here:\xa0https://edgeryders.eu/en/open-insulin-research-group/biohackathon-at-waag-society-8-9-july', u'entity_id': 7979, u'annotation_id': 7700, u'tag_id': 918, u'entity_type': u'comment'}, {u'quote': u'Apart from getting the device together, we can start thinking about what to do at the biohackathon in July. Federico shared some interesting techniques like Loop Mediated Isothermal Amplification\xa0(LAMP) and Recombinase Polymerase Amplification (RPA) that are convenient to use in microfluidics, as they are isothermal reactions. We already discussed culturing bacteria on the chip.\xa0We could\xa0add a detection step or\xa0try to do a transformation, or do\xa0cloning.', u'entity_id': 30405, u'annotation_id': 7699, u'tag_id': 918, u'entity_type': u'comment'}, {u'quote': u"Waag Society and Digi.bio are organising a biohackathon on July 8-9 in Amsterdam. They asked if we are up for joining with a team of 4-5 people. We will be able to experiment with the open source microfluidics chips Digi.bio has developed.\nThe event will be a mix of presentations and hands-on work, with a focus on the latter. Many experts in the field will be there. Waag Society itself is of course also worth a visit!\nThis is a good occassion to get some more input on the plans we have regarding microfluidics.\nWe can already go on the evening of the 7th to avoid early travels and to enjoy the\xa0evening in Amsterdam.\nAs we discussed in the meeting of June 7th, we could\xa0try to replicate some of the work we do with the plasmids on the chips.\nWho's up for joining? Any other ideas?", u'entity_id': 6388, u'annotation_id': 7698, u'tag_id': 918, u'entity_type': u'post'}, {u'quote': u'Hackers', u'entity_id': 6272, u'annotation_id': 12501, u'tag_id': 2618, u'entity_type': u'post'}, {u'quote': u'We\u2019re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes.', u'entity_id': 812, u'annotation_id': 7705, u'tag_id': 920, u'entity_type': u'post'}, {u'quote': u'Open Insulin is one of many projects at Counter Culture Labs, a biohacker space in Oakland, CA. Counter Culture Labs was founded around 2011-2012 by a group of hackers with diverse backgrounds and interests. Members joined us from Sudo Room, another hacker space in Oakland, and Biocurious, a biohacker space in Sunnyvale. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Eventually, the community we built in the hacker space reached a critical mass of knowledge and interest around the idea of starting to producing insulin with a manual protocol, but one designed to be simpler and less expensive than existing methods. We named the project \u201cOpen Insulin\u201d to reflect a commitment to make the results freely available to any interested party and publish our methods openly. The name was a deliberate reference to open source software.\nOpen source, as many readers may know fro', u'entity_id': 552, u'annotation_id': 7704, u'tag_id': 920, u'entity_type': u'post'}, {u'quote': u'My own group\u2019s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: \u201cThe FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living\u201d.', u'entity_id': 759, u'annotation_id': 7703, u'tag_id': 920, u'entity_type': u'post'}, {u'quote': u'Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.', u'entity_id': 523, u'annotation_id': 7702, u'tag_id': 920, u'entity_type': u'post'}, {u'quote': u'now reading this and your paper, and thinking about our small discussion with laurel and (..) on fablabs, hackerspaces in different countries.', u'entity_id': 38834, u'annotation_id': 11842, u'tag_id': 1935, u'entity_type': u'comment'}, {u'quote': u'brief.\xa0\n\n\ncurve-hero-nelson-700.jpg700x1078 184 KB\n\n\nAlso are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/chea', u'entity_id': 23379, u'annotation_id': 12717, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u'@noemi Due to my PhD studies at Universit\xe9 Laval, I am currently based in Quebec, where I am a member of the Fablab EspaceLab Qu\xe9bec. As a researcher for the LABCMO (common Lab between Universit\xe9 Qu\xe9bec \xe0 Montr\xe9al and Universit\xe9 Laval), I am studying some makerspace in Qu\xe9bec. My interest in Biohacking is due to my background in biochemistry. But for my thesis my focus is Africa, that is why the topic is:', u'entity_id': 37591, u'annotation_id': 11809, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u'I\u2019m one of the volunteer organisers of a community of science hackers in Berlin. Since 2013 we\u2019ve been running a local edition of the hackathon Science Hack Day which brings together scientists, artists, designers, engineers, developers and other enthusiasts with an open brief to collaborate, ideate and hack together. We\u2019ve grown a really amazing community of passionate and talented interdisciplinary folks and we\u2019d love to be able to develop some more ambitious civic or cultural projects. But we\u2019re already at the limit of what we can achieve as volunteers. It\u2019s a classic Catch 22 volunteer trap \u2013 we need money to buy us more time, but we don\u2019t have enough time to work on finding money.', u'entity_id': 6427, u'annotation_id': 7721, u'tag_id': 921, u'entity_type': u'post'}, {u'quote': u'We\u2019re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes.\nfreeflowcreativity.co', u'entity_id': 812, u'annotation_id': 7720, u'tag_id': 921, u'entity_type': u'post'}, {u'quote': u'In Future Makers. the city authorities and the\xa0local "city hackers" agree on a street, or a square, or a park, that is marked as "editable". Within the limits set, everything is allowed, as long as the people build it themselves. We will then see what happens.', u'entity_id': 29087, u'annotation_id': 7719, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u'So, to make strangers connect, a sensible strategy seems to be to "think like a hacker" and\xa0exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem\xa0to be hardwired for forming groups. It is very, very easy to make humans behave like a group \u2013 check out', u'entity_id': 19934, u'annotation_id': 7718, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u'We\u2019re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes.', u'entity_id': 812, u'annotation_id': 7717, u'tag_id': 921, u'entity_type': u'post'}, {u'quote': u"*\xa0What you say about \u201abypassing\u2019 is actually the reason for hacking -\xa0for opencare. Once you certify your product is \u201afrozen\u2019. Yes it\u2019s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https://edgeryders.eu/en/fes-for-foot-drop). You can't meet individual requirements because youll lose certification.", u'entity_id': 33426, u'annotation_id': 7716, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u"Regarding\xa0@Costantino, I have been airing the idea of making a 'neuroprostethics' hacking event. We need the right subject (patient), a clinician (OpenCare type) and clear some formal\xa0issues. Some people that I had in mind had to drop out (for logistic and\xa0health problems).", u'entity_id': 11841, u'annotation_id': 7715, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\xa0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references", u'entity_id': 21205, u'annotation_id': 7714, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u"I've met \xc9ireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content.\nThen I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff.\n\xc9ireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs\xa0on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann\u2019s years of assessing devices for security holes, they wouldn\u2019t normally be \u201callowed\u201d to investigate the security of such devices.\nThis implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable.\nI suggest you watch this great video from 32C3, where Marie and \xc9ireann tell about their journey.\nObviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it.\nBut that's not all - \xc9ireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is \u201cSafer. Sooner. Together.\u201d\nHe contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\nFinally, \xc9ireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.", u'entity_id': 712, u'annotation_id': 7713, u'tag_id': 921, u'entity_type': u'post'}, {u'quote': u'After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one\u2019s own body is one of the most gratifying experiences everyone could hope for, that\u2019s how the idea of creating an exoskeleton to be used in everyday\u2019s life was born.', u'entity_id': 806, u'annotation_id': 7712, u'tag_id': 921, u'entity_type': u'post'}, {u'quote': u'Also mentioned: hackers making rucksacks for refugees.', u'entity_id': 10261, u'annotation_id': 7710, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )", u'entity_id': 10261, u'annotation_id': 7709, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u'To me, the most exciting idea would be to get hackers involved in health care. Healing people is (often / can be) easy when you apply creativity and radical tech and hacker problem solving mentality.', u'entity_id': 10261, u'annotation_id': 7708, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u'Prevention of Suicide in the hacker community\n \n\nThis target is a bit too tight on hackers and becomes then necessary define what is a hacker and we think we could get stuck in this conversation (ie. why only hackers and \xa0not makers? what are really hackers?)\xa0.\nWhy don\u2019t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?', u'entity_id': 6774, u'annotation_id': 7707, u'tag_id': 921, u'entity_type': u'comment'}, {u'quote': u'Prevention of Suicide in the hacker community', u'entity_id': 5479, u'annotation_id': 7706, u'tag_id': 921, u'entity_type': u'post'}, {u'quote': u'This was the case for Sara\xa0Savian\xa0and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.\xa0 It allows the patient to record and report exercises, data- such as hand position and fingertips pressure.', u'entity_id': 861, u'annotation_id': 7722, u'tag_id': 922, u'entity_type': u'post'}, {u'quote': u'#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.\xa0\nreHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming.\nOur beneficiaries are all those people who needs to have an experience feedback concerning the hand movements.\nreHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance.\nReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.\nreHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.\xa0\nTo define our project we didn\u2019t started from a theoretical concept. We started to make the prototype and to test it.\xa0\nThe development of reHub working prototype has been at the heart of our design process.\nAs described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design.\nAfter testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove\u2019s collected data through a graphical interface and cartesian charts.\nWe are looking for our final user(s), who will try our product and help us develop different options:\n\nSport\nGaming\nEducational\nMedical \xa0\n\nWe want to built a community and start a business strategy.\nWe will publish tutorials, kits and software to make your glove.\nEverything to improve the glove solution.\nWe want to develop 4 different kits to sell:\n\nwith single sensors\xa0\nonly the electronics\nglove tailored\ncomplete of all\n components\n\nWebsites & Social\nwww.rehub.pro\nwww.facebook.com/rehubglove', u'entity_id': 33751, u'annotation_id': 7723, u'tag_id': 923, u'entity_type': u'post'}, {u'quote': u"@Michel this looks like a very dire situation in Madagascar  I'm glad the business ideas list provided some inspiration, but you'll have to see how much impact DIY business ideas can have on poverty at first. I did not go ahead with any of these ideas in Nepal because @Dipti_Sherchan advised me that in her country, ideas involving new technology will have a hard time to be accepted in the villages. Something like a DIY backup system with used Li-Ion batteries is just over their heads, for example.", u'entity_id': 21834, u'annotation_id': 12718, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'All these reasons explain why I took the decision to do my research in Open Science and particularly DIY ; technology is a good way for communities to ensure themselves their own local development. That is why in December I will launch inside my community, one science shop combined with a lab, for the rapprochement science-society.', u'entity_id': 37591, u'annotation_id': 11820, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'How do we encourage funders to support DIY science initiatives now?', u'entity_id': 6459, u'annotation_id': 7756, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'I\u2019d like to propose a session around a recent new project \u2013 the DIY Science Network \u2013 with a lot of parallels with Opencare. It would be great to connect these efforts where it makes sense. \n\xa0\nI\u2019m one of the volunteer organisers of a community of science hackers in Berlin. Since 2013 we\u2019ve been running a local edition of the hackathon Science Hack Day which brings together scientists, artists, designers, engineers, developers and other enthusiasts with an open brief to collaborate, ideate and hack together. We\u2019ve grown a really amazing community of passionate and talented interdisciplinary folks and we\u2019d love to be able to develop some more ambitious civic or cultural projects. But we\u2019re already at the limit of what we can achieve as volunteers. It\u2019s a classic Catch 22 volunteer trap \u2013 we need money to buy us more time, but we don\u2019t have enough time to work on finding money. \n\xa0\nTHE PROBLEM\nFrom talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities\u200a\u2014\u200awe all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. \nFinding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to \u2018citizen science\u2019 at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it. \n\xa0\nJOINING FORCES: THE DIY SCIENCE NETWORK\nThe DIY Science Network has grown out of a number of conversations around these topics. We exploded into existence last autumn fueled by some rather difficult and inequitable interactions with institutional partners, but are now focussed on channeling our energy into positive action. It is a meta network between DIY science initiatives: part \u2018P2P: sharing best practices\u2019 and part \u2018advocacy for access to public research funding\u2019. So far most of the work we\u2019ve done has been about growing the network and finding our identity. \n\xa0\n\n\xa0\nOUR PROGRESS\nWe took part in the Mozilla Global Sprint earlier this month with a focus on the P2P side of the project. However, for now we think the priority should really be to get an advocacy platform up and running as soon as possible in the hope that we might still be able to have some influence on agenda setting for FP9. In the short term we hope soon to secure funding to gather 4-5 European community/project organisers together for a co-design sprint to lay the foundation for the network \u2013 describe our identity, values, mission, begin to craft our advocacy arguments and roadmap next steps \u2013 and build a basic website.\n\xa0\nAt #Openvillage, we would like to keep our focus on the advocacy side of the project:\n\xa0\nMAIN CHALLENGE\nHow do we encourage funders to support DIY science initiatives now? And, longer term, how can we foster a funding culture that is supportive of non-institutional science?\n\xa0\nQUESTIONS TO ADDRESS\n\n\nWhat kind of funding do we need? (fellowships? core funding? project funding?) and how much?\n \n\nThere is a lot of perceived risk in funding non-institutional projects, especially at the European level where so many stakeholders are involved. How to we allay those fears? What about ethics committees, scientific advisory boards, financial controlling...?\n \n\nHow can the impact of our projects be evaluated?\n \n\nDoes it make sense to work with intermediary organisations (fiscal sponsors) who manage the distribution of smaller funds (Individual DIY science initiatives are not usually looking for EC-scale funding budgets - think \u20ac1000s or \u20ac10 000s rather than \u20ac100 000s or \u20acmillions.), provide training/project co-design, mitigating risk for the funding bodies? \n \n\nIs public funding even the way to go? E.g. Would be we better off concentrating on changing the culture of science-funding foundations to encourage them to support DIY science? Should we be working on developing our own business models? ...\n \n\n\xa0\nAs yet we don\u2019t have a clear idea for a format for #openvillage - it will depend on what stage we are at by the time of the festival. But in general, we are very open to talk about how to bring in this topic in the most constructive way possible for everyone.', u'entity_id': 6427, u'annotation_id': 7755, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u"Winnie was telling me that this is\xa0accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:\n\n\xa0you can demonstrate diy science and how it contributes to increasing health awareness and care\n\xa0you demonstrate its openness, how communities take it on board and learn, then teach others etc.", u'entity_id': 17617, u'annotation_id': 7754, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'Something in your project reminds me of a different project we are working on at Edgeryders. It\'s called Future Makers, and it\'s about DIY urbanism. Not so much city\xa0planning\xa0as city\xa0making, directly. It happens in three cities: Yerevan, Armenia; Rustavi, Georgia; and Luxor, Egypt, under the aegis of the United Nations Development Programme. Working with UNDP, we have noticed that there are groups of people who are trying to "edit"\xa0the city as if it were a wiki, without necessarily going through all the mandated procedure. Some of the "edits" are good, great in fact: look at this Cairo neighborhood were people got out with\xa0bulldozers\xa0and build four new ramps to access the ring road!', u'entity_id': 29087, u'annotation_id': 7753, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u"ReaGent has been going for about a year. We\u2019ve experimented with several ways to bring biology closer to society. We've had children work with enzymes, build\xa0their own microscope, extract DNA and much more.\xa0The coming year, we will expand to reach more children and this scale-up entails several challenges.", u'entity_id': 530, u'annotation_id': 7752, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people.\nThe first time we visited I was surprised how \u201egood\u201c the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).\xa0\nThe ICC Messe is a former congress centrum which was recently rebuilt\xa0to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling.\xa0Inside of each room there are 4 bunk beds, so in total 8 people per room\xa0(familys are usually separated and live in private rooms, also: the rooms are separated by gender).\nUsually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.\xa0\nFirstly we asked how people organize themselves in the room.\nThe Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying \u201eK\xfchlschrank\u201c. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored\xa0there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official \u201emeals\u201c. They boil the eggs in a water cooker by the way!\xa0\nAnother interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living.\nAlso very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night.\nBerivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light.\nAnother very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night.\nAlso they put pictures from magazines on the wall to make the atmosphere a little more cosy.\nBut still even if they find the possibility to hack something there is a lot of stuff just flying around in the room.\nThere was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore.\xa0What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?", u'entity_id': 681, u'annotation_id': 7751, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'Hello everyone,\xa0 as Wemake we would like to share more research around existing products that align with the concept of care.\xa0\xa0 This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.\xa0 Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.\xa0 The posts to follow will elaborate on different technologies applied in open projects around the theme of care.\n\xa0\nMaestro\nAbout:\xa0 Making your own finger mounted input device to control the cursor.\nCountry: USA\nYear: 2015\nBy: Jonggi Hong - student of the course \u201cTangible Interactive Computing\u201d taken by Professor Jon Froehlich at the University of Maryland, College Park. \n\xa0\nIt is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course "Tangible Interactive Computing" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers.\nHow is it open?\n\n\nMaestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic).\n \n\nAnyone can clone and fork it.\n \n\nSource code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though: \n \n\n\xa0\n\xa0BOM\n\n\nArduino Pro Mini https://www.sparkfun.com/products/11113\n \n\n9DOF IMU sensor stick https://www.sparkfun.com/products/10724\n \n\nCopper tape (or any other small conductive material) \n \n\n3 resistors (1~10 mega ohm, big resistance is better) \n \n\nWires, tape \n \n\n3D printer\n \n\nLink: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/\nhttps://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es', u'entity_id': 512, u'annotation_id': 7750, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'A DIY solution that provides customized physiotherapy at home. \xa0Composed of 3D printed parts, and a simple mobile app, the solution works in a way that makes it easy to stimulate muscles and nerves of the patient who needs therapy, with customized motion and power. \xa0\xa0\nA wonderful family was in the Hubotics booth. \xa0I had a chance to interview Luca, the project co-founder, who was demonstrating the project and openly shared the story of his solution below.\nThe project is still in development and is in need of testers, read the story and see if you can take part in the project in its current status.\n1. \xa0How did you start the project? What were your motivations?\nThe Hubotics project started in late 2013. At that point I was about to finish my Master\u2019s studies and I wanted to add a practical side to my technical skills as an engineer and as a passionate DIYer by developing accessible technologies and aids which could have helped improving independence for people suffering from motor disabilities. Actually, the reason why I decided to study engineering and became a builder and hacker stemmed from my personal experience with my sister Chiara, who suffers from a motor disability.\nI remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the \u201clatest\u201d rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one\u2019s own body is one of the most gratifying experiences everyone could hope for, that\u2019s how the idea of creating an exoskeleton to be used in everyday\u2019s life was born.\n2. Did you start alone? How long did it take to develop the initial prototype? How was it funded?\nAround that time, I started speaking about these ideas with Roberto, a friend with whom I had studied between Torino and Milano. Together, we started brainstorming and discussing and we finally converged on the idea of developing a low-cost, 3D printed exoskeleton for rehabilitation and assistance of upper-limbs, directly at people\u2019s homes.\nThe idea was proposed at the Telecom Italia WCAP accelerator in Catania that believed in the project and decided to fund us. This allowed us to buy the 3D printers and the components to build and iterate on our ideas and prototypes. The first reliable prototype of the device, finalized in one year, consisted of a wearable, smartphone-controlled, elbow exoskeleton.\nAfter showing the device at the MakerFaire 2015 in Rome and gathering plenty of positive feedback, we understood that the project had plenty of potential and decided to keep working on it.\nWhat is your current status now?\nToday, together with Roberto and Chiara, we keep on improving our devices and iterate on the designs in order to achieve a concept as usable and useful as possible while maximizing customizability and accessibility. Our latest device consists of an exoskeleton with 3 active degrees of freedom for controlling the shoulder abduction/adduction, shoulder flexion/extension and elbow flexion/extension of its wearer.\nThe device can be controlled by means of a smartphone app or by a program with predefined motions/tasks.\n5. How do you see it moving forward? What kind of help/expertise/data that is missing for moving to a next phase?\nOur main objective in the near future is running experiments with potential users of the exoskeleton and their relatives, in order to gather further feedback and improve our devices based on this.\n\xa0Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users\u2019 houses (services?), all these are open questions that we will be working on for the next phase.', u'entity_id': 806, u'annotation_id': 7749, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u"But FoodSov and Agroecology are also about being practical and hands-on, hence the phrase about growing food and not writing manifestos. 70% of the world's food is produced -contrary to mass belief, by small farmers around the world. We are an active movement, we put food on our table every day, and that's no small thing. We just need to realise the importance and value of that, and unite with our natural allies -e.g. the producers and bringers of our food and health (for as a wise farmer once said 'we are not in the business of producing mere food! I like to say that what I do for a living is cultivate people's health').", u'entity_id': 11122, u'annotation_id': 7748, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'Provided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.', u'entity_id': 523, u'annotation_id': 7747, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u"A cooperative model where citizens with various skills can work together on realizing devices for use in everyday life, that will improve or maintain individual functional capabilities. This model will explore ways to transfer research results directly to users (target participants). New and existing ideas will be challenged and transformed into methods and assistive technology for activities of daily living. Initial focus will be to demonstrate how the challenges of mobility can be resolved by helping people's creativity in a social environment. One challenges that people often meet is the need for adaptation of tools to be able to perform day-to-day tasks as .abilities change, In the WeHandU laboratory people will be able (and helped) to implement such changes.", u'entity_id': 720, u'annotation_id': 7746, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u"This is really nice to hear. Was just talking with 2 of my Syrian friends and they said it's very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.", u'entity_id': 31536, u'annotation_id': 7743, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'LEDs are another option for color personalization instead of paint. If you DIY, just make sure you understand what resistor you need. You will need one unless you do plug in LED-bands which are relatively expensive (but still not bad, you could also cannibalize them). If treated right LEDs will last forever though.', u'entity_id': 23108, u'annotation_id': 7742, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'Pull broken head-phones out of the trash and fix them (9/10 are broken at the jack, you can fix them with almost nothing, if you are good you can re-use the solder that is already on them. Then you only need a lighter/candle and e.g. some liquid adhesive and string to fix things permanently. A quiet atmosphere and my (home) sounds around me help my mood a lot.', u'entity_id': 23108, u'annotation_id': 7741, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'If you want to personalize with few resources - try making your own paint. I recommend you use non-toxic pigment (and still use masks - just to spread awareness), and there are a bunch of non-toxic to fairly harmless liquids to mix stuff into (e.g linseed oil*). You can get a lot done with mortar and pestle for personalization scale.', u'entity_id': 23108, u'annotation_id': 7740, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'We have been fantasizing about "emergent" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.', u'entity_id': 16195, u'annotation_id': 7739, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'process', u'entity_id': 703, u'annotation_id': 7738, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'e little gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth.', u'entity_id': 703, u'annotation_id': 7737, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'Conclusion: for DIY to really work its magic, things have to be cheap. The cheaper the better.', u'entity_id': 9202, u'annotation_id': 7736, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'The Little Devices lab takes a DIY approach to designing and building tools, mainly for healthcare', u'entity_id': 707, u'annotation_id': 7735, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'http://www.rferl.org/content/lesbos-migrants-turning-boats-into-backpacks-dutch-volunteers/27587663.html\nis a link to a story about a Dutch woman who made a super clever hack of the junk boat and lifejacket parts to make backpacks out of them using a few simple tools, which she then taught to the refugees. \xa0An excellent maker story solving a real problem without having to get too high tech or even ask for wither permission or forgiveness..', u'entity_id': 5462, u'annotation_id': 7731, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )", u'entity_id': 10261, u'annotation_id': 7730, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'To me, the most exciting idea would be to get hackers involved in health care. Healing people is (often / can be) easy when you apply creativity and radical tech and hacker problem solving mentality.', u'entity_id': 10261, u'annotation_id': 7729, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'I think Nadia agreed, and said that we could/should try to get some concrete change from this project (as well as fulfilling the minimum requirements of providing the research / ideas / documentation.)', u'entity_id': 10261, u'annotation_id': 7728, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u"I'd be more likely to put effort into the open care thing if I believed it would come up with concrete results (e.g. helping people / reducing suffering) , if it was just making a big document that got read and largely ignored, I'd feel it was a waste of time, and I think everyone will share this feeling.", u'entity_id': 10261, u'annotation_id': 7727, u'tag_id': 924, u'entity_type': u'comment'}, {u'quote': u'e build a number of small, focused events in which people existing intiatives with designing and build the identified fixes/hacks/solutions and projects. Kind of like the workshop on Collaborative Inclusion...but taking place over a couple of days, in a hacker or makerspace, where you leave having built something that works', u'entity_id': 5463, u'annotation_id': 7726, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'When it comes to DIY solutions to health- and social care problems, there is a key tension between asking for permission and asking for forgiveness. Who/how can and should we convene around finding legal/administrative hacks for existing DIY solutions to health- and social care problems?', u'entity_id': 5463, u'annotation_id': 7725, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'The second free hands-on workshop of the #opencare series will take place this next Thursday 7 april\xa0in Milan at \u20185 Forum delle politiche sociali\u2019. Come and learn how to create an #IoT #opensource service to monitor and take care of your loved ones remotely.', u'entity_id': 5518, u'annotation_id': 7724, u'tag_id': 924, u'entity_type': u'post'}, {u'quote': u'HandYwiN', u'entity_id': 34541, u'annotation_id': 12288, u'tag_id': 2499, u'entity_type': u'post'}, {u'quote': u'On a lighter note...', u'entity_id': 13151, u'annotation_id': 7757, u'tag_id': 925, u'entity_type': u'comment'}, {u'quote': u'Jean: There is a desire of using new ways of technology to organize his place within the society je cherche a me socialiser, trouver une occupation profitable, mais je voudrais rester dans la marginalit\xe9. Find a meaning in his life, but stay at the edge of society.', u'entity_id': 541, u'annotation_id': 7758, u'tag_id': 926, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 31041, u'annotation_id': 7760, u'tag_id': 927, u'entity_type': u'comment'}, {u'quote': u'The call itself is based (it has a record) on the physicality (fisicit\xe0) of the object, as it was a result of the main experience of WeMake with opencare, given that all services needed new design and that service and hardware may reach a ratio definitely in favour of the services (service 90%; hardware 10%).', u'entity_id': 574, u'annotation_id': 7759, u'tag_id': 927, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 7761, u'tag_id': 928, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 801, u'annotation_id': 7762, u'tag_id': 929, u'entity_type': u'post'}, {u'quote': u"Hello Albero,\nI think that opencare was meant as a broader topic, indeed for me, inequality is strongly related to health.\xa0\nThe wealth that gets drained, without taxation, by platforms could/should be used to power many initiatives that are related to social care.\nAlso, the same giants that are in control of the dominating platforms are the one that we should fear more in the healthcare industry.\xa0\nCalico, a company that will tackle aging, is owned by Google. In general, the Silicon Valleys' company are investing a lot in Biotechnology and Healthcare, and this is because they know that they can dominate this sector.\nWe are in the Omics Era https://www.slideshare.net/swamihetal/omics-era, data are crucial and will lead in the coming 10/20 years to have personal medicine and gene therapy that could lead to an unprecedented extension of human lifespan.\xa0\nBig tech companies are the ones that know better how to harness information from data, that's why they know that they are going to compete with hospitals and with nationals public health sectors.\nIn general, I think it's important to analyze problem in a non-reductive way and that we should learn as much as possible on platforms' topics and counteract where we still can,\n\xa0but it could be a good idea to have also focused on health related platforms and companies (e.g. 23&me that do private analysis on DNA etc.)", u'entity_id': 18104, u'annotation_id': 7769, u'tag_id': 934, u'entity_type': u'comment'}, {u'quote': u'GNU Health is a sister initiative which we discovered at the Open Source Initiative and some time later at the Internation Symposium on Open Collaboration.\nGNU Health concept is simple as free software: all people should collaborate to build a common of knowledge instead of building competitive, exclusive systems that hinder access to healthcare services of quality. GNU Health ensures that the different therapists and doctors who follow our children have the best available information about them, so that they can provide the best advices for the best health outcomes.\nThanks for all efforts put in developing this project!', u'entity_id': 13941, u'annotation_id': 7768, u'tag_id': 934, u'entity_type': u'comment'}, {u'quote': u'c) least but not last, three trainees (all nurses) are collaborating online to create emojis on healthcare, diagnosis and surgery issues. More to come... Seen your interest it might be useful to share some thoughts and network a bit on such perspective together in a videoconference perhaps..', u'entity_id': 27809, u'annotation_id': 7767, u'tag_id': 934, u'entity_type': u'comment'}, {u'quote': u'Therefore i would like to engage other scholars, makers, educators, archivists, patients and who else inspired by an open paradigm of healthcare in contributing to a p2p learning project to advance healthcare professions curricula and innovate where possibile and to open knowledge filed the higher education for healthcare professions. Please add your comment to participate.', u'entity_id': 524, u'annotation_id': 7766, u'tag_id': 934, u'entity_type': u'post'}, {u'quote': u'national health service is linked to employment. When a Greek loses work, it keeps health care for a year: if you have not found another job after a year, you lose the right to access to the National Health Service. If you get sick, you have to invent something, or die.', u'entity_id': 4913, u'annotation_id': 12731, u'tag_id': 2080, u'entity_type': u'post'}, {u'quote': u'They are not just the Greeks. In all European countries, except the United Kingdom and Italy, occupied status is a prerequisite for access to healthcare. But Greece has been hit harder by the 2008 crisis: many more people who have become unemployed in the long run. "We were poor even ten years ago - says Maria, a psychologist who volunteered at MCCH - but at that time the people in trouble could ask for help to families or neighbors. Today their families and their neighbors are in difficulties, and they can not do much to help others. People are desperate. "', u'entity_id': 4913, u'annotation_id': 12727, u'tag_id': 2080, u'entity_type': u'post'}, {u'quote': u'. \xa0In order to access healthcare, we are tied to jobs that are literally killing us, whether it be mental depravity or physical degradation.', u'entity_id': 521, u'annotation_id': 7770, u'tag_id': 2080, u'entity_type': u'post'}, {u'quote': u"Il tuo progetto in un tweet*\n\n\n\n\n\n\tDoc.doc \xe8 la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica pi\xf9 completa possibile.\n\n\n\tBisogno o problema che il tuo progetto cerca di risolvere*\xa0\n\n\n\n\n\n\nSempre di pi\xf9 patologie complesse necessitano della collaborazione tra molti specialisti della cura.\n\nA questi diversi professionisti manca per\xf2 la possibilit\xe0 di comunicare e condividere informazioni su una piattaforma dedicata.\n\nL\u2019attuale procedura di lavoro evidenzia i seguenti problemi:\n\n\nDelega al paziente la responsabilit\xe0 nel fornire le corrette informazione relative al proprio caso.\nRende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi.\nNon permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all\u2019incontro con lo stesso.\n\n\nDoc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura.\n\nInoltre la progettazione UX \xe8 stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un\u2019email.\n\n\n\n\n\tUtente finale, individui e/o comunit\xe0 di riferimento*\n\n\n\n\n\n\nIl prodotto \xe8 pensato per i medici, ma i maggiori benefici andranno ai pazienti.\n\nDoc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (pi\xf9 pianificazione, pi\xf9 chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando.\n\n\n\n\n\tSoluzione, breve descrizione del progetto*\n\n\n\n\n\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\nInoltre, in una fase successiva, sar\xe0 possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro\xa0categorizzazione per patologia.\n\n\n\n\n\tTecnologie utilizzate o che vorresti utilizzare*\n\n\n\n\n\n\nLo strumento che abbiamo progettato si esprimer\xe0 attraverso un\u2019applicazione mobile per ambienti Android e iOS, che verr\xe0 quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l\u2019utilizzo del software il pi\xf9 immediato possibile. E\u2019 comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform.\n\nIl servizio cloud potr\xe0 essere sviluppato in NodeJS, con basi dati MongoDB e MySQL.\n\n\n\n\n\tSito web (o social network)\n\n\n\n\n\n\nIn fase di pianificazione.\n\n\n\n\n\tLicenza, che pensi di utilizzare\n\n\n\n\n\n\nOpensource\n\n\n\n\n\tStato attuale del progetto*\n\n\n\n\n\n\nIl progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\n\n\n\n\n\tConsiderando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto.\n\n\n\n\n\n\n1.0 Scoperta\n\n1.1 Osservazione del contesto\n\nDoc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d\u2019occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti.\n\n1.2 Acquisizione di idee, spunti, intuizioni\n\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\n\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\n2.0 Definizione\n\n2.1 Analisi delle soluzioni\n\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\n\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\n\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\n\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\n\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\n\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\n\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n\n3.0 Sviluppo\n\n3.1 Progettazione e prova del prototipo\n\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\n\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\n\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\n\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\n\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n\n4.0 Rilascio\n\n4.1 Completamento del prodotto/servizio\n\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\n\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\n\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\n\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\n\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentcommunication between doctors\n  \n    \n    Edit\n    Delete\n  \nNo Commentcommunication between doctors\n  \n    \n    Edit\n    Delete\n  \nNo Commentcontinuity of care\n  \n    \n    Edit\n    Delete\n  \nNo Commentdesign intervention\n  \n    \n    Edit\n    Delete\n  \nNo Commentelectronic patient records\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 33729, u'annotation_id': 12722, u'tag_id': 936, u'entity_type': u'post'}, {u'quote': u'After the first submission, our original project "doc.doc" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually\xa0turned out the early project in ResQ!\n\nIn particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as\xa0emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.\n\n\xa0Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it!\n\n\n\n\n\tOur project in a tweet\n\n\n\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.\n\n\n\n\n\tProblem that our project\xa0is willing to solve\n\n\n\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.\n\nThe current way of working shows the following problems:\n\n\n\n\n\tThe language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.\n\n\n\tThe missing digitalization of the gathered health data and the consequent discontinuity of the healing process.\n\n\n\tThe limited precision of the anamnestic research due to the high number of patients and the short time available.\n\n\n\n\n\tFinal User, individuals and\xa0community target\n\n\n\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.\n\n\xa0https://www.youtube.com/embed/MZSMi316E-Y\n\n\n\n\n\tSolution, brief description of the project\n\n\n\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.\n\n\nResQ-board.jpg2045x2500 640 KB\n\n\n\n\n\n\tTechnologies we will adopt\n\n\n\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.\n\n\n\n\n\tWebsite', u'entity_id': 866, u'annotation_id': 12736, u'tag_id': 936, u'entity_type': u'post'}, {u'quote': u"Il tuo progetto in un tweet*\n\n\n\n\n\n\tDoc.doc \xe8 la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica pi\xf9 completa possibile.\n\n\n\tBisogno o problema che il tuo progetto cerca di risolvere*\xa0\n\n\n\n\n\n\nSempre di pi\xf9 patologie complesse necessitano della collaborazione tra molti specialisti della cura.\n\nA questi diversi professionisti manca per\xf2 la possibilit\xe0 di comunicare e condividere informazioni su una piattaforma dedicata.\n\nL\u2019attuale procedura di lavoro evidenzia i seguenti problemi:\n\n\nDelega al paziente la responsabilit\xe0 nel fornire le corrette informazione relative al proprio caso.\nRende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi.\nNon permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all\u2019incontro con lo stesso.\n\n\nDoc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura.\n\nInoltre la progettazione UX \xe8 stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un\u2019email.\n\n\n\n\n\tUtente finale, individui e/o comunit\xe0 di riferimento*\n\n\n\n\n\n\nIl prodotto \xe8 pensato per i medici, ma i maggiori benefici andranno ai pazienti.\n\nDoc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (pi\xf9 pianificazione, pi\xf9 chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando.\n\n\n\n\n\tSoluzione, breve descrizione del progetto*\n\n\n\n\n\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\nInoltre, in una fase successiva, sar\xe0 possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro\xa0categorizzazione per patologia.\n\n\n\n\n\tTecnologie utilizzate o che vorresti utilizzare*\n\n\n\n\n\n\nLo strumento che abbiamo progettato si esprimer\xe0 attraverso un\u2019applicazione mobile per ambienti Android e iOS, che verr\xe0 quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l\u2019utilizzo del software il pi\xf9 immediato possibile. E\u2019 comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform.\n\nIl servizio cloud potr\xe0 essere sviluppato in NodeJS, con basi dati MongoDB e MySQL.\n\n\n\n\n\tSito web (o social network)\n\n\n\n\n\n\nIn fase di pianificazione.\n\n\n\n\n\tLicenza, che pensi di utilizzare\n\n\n\n\n\n\nOpensource\n\n\n\n\n\tStato attuale del progetto*\n\n\n\n\n\n\nIl progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\n\n\n\n\n\tConsiderando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto.\n\n\n\n\n\n\n1.0 Scoperta\n\n1.1 Osservazione del contesto\n\nDoc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d\u2019occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti.\n\n1.2 Acquisizione di idee, spunti, intuizioni\n\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\n\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\n2.0 Definizione\n\n2.1 Analisi delle soluzioni\n\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\n\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\n\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\n\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\n\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\n\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\n\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n\n3.0 Sviluppo\n\n3.1 Progettazione e prova del prototipo\n\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\n\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\n\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\n\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\n\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n\n4.0 Rilascio\n\n4.1 Completamento del prodotto/servizio\n\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\n\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\n\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\n\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\n\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.", u'entity_id': 33729, u'annotation_id': 12735, u'tag_id': 936, u'entity_type': u'post'}, {u'quote': u'Well done Marco, @Irene_Lanza\xa0& Henrik. And welcome on board to Irene, new Edgeryder.\n\nI\'ve only heard of teaching echolocation "manually" via examples like Daniel Kish\'s ("Batman") school for children. And through handheld devices and more recently a mobile app (?), but those are mediating the environment, as you rightly point out. Kudos for the open approach, and thinking about community members who might be interested in this.\n\nMaybe Alison Smith from Pesky People..? hm.', u'entity_id': 6898, u'annotation_id': 12732, u'tag_id': 936, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 781, u'annotation_id': 7777, u'tag_id': 936, u'entity_type': u'post'}, {u'quote': u"Alessandro,\xa0I'm also interested in approaches where the data entry\xa0becomes organic, integrated in your routine, almost happening in the\xa0background. i.e. a wonderful UI UX.\xa0\nI will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I\u2019ll definitely like to deliver a smooth user experience.", u'entity_id': 24217, u'annotation_id': 7776, u'tag_id': 936, u'entity_type': u'comment'}, {u'quote': u'In the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:\xa0\nCarrots, Broccoli, Fennel = Low Histamine\nTomato, Orange, Kiwi = High Histamine\nCoffe, Garlic, Grapes =\xa0sometimes tolerated\nThis are informations\xa0that\xa0anyone can find online but while at the supermarket or while choosing\xa0your ice cream flavour, it is handy to have it quickly ready all together in an app.', u'entity_id': 20905, u'annotation_id': 7775, u'tag_id': 936, u'entity_type': u'comment'}, {u'quote': u'ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.', u'entity_id': 33817, u'annotation_id': 7774, u'tag_id': 936, u'entity_type': u'comment'}, {u'quote': u'Tutto \xe8 nato da una nostra esperienza\nMonica: \u201cNicoletta? Andiamo a mangiare una pizza?\u201d\xa0\nNicoletta: \u201cCerto! Prenoto per due al solito posto dove puoi mangiare anche tu?\u201d\xa0\nM.\u201cOk!\u201d.\nRistoratore: \u201cBuona sera Signore, avete prenotato?\u201d\nN. \u201cS\xec, per due; nome Nicoletta\u201d. -\nEccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l\u2019ordine.\xa0\nN.\u201cPer me una prosciutto e funghi\u201d\nM. \u201cIo invece..premetto: sono intollerante al glutine e al lattosio...\u201d il cameriere annuisce \u201c...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...\u201d\nC.\u201cS\xec signora\u201d\xa0\nM.\u201dBene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini\u201d\nC. \u201cDa bere?\u201d\nN. \u201dUna birra per me!\u201d\nC.\u201dE lei?\u201d\nM.\u201dIo? Che cosa posso bere che non sia acqua?\u201d\nC.\u201dAbbiamo due birre senza glutine\u201d\nM.\u201dQuali?\u201d\nC.\u201dLa Daura e la Peroni\u201d.\nGiro lo sguardo verso Nicoletta con un\u2019espressione rassegnata e penso \u201d...sempre quelle...\u201d\nPassano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca \xe9 terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame per\xf2 e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - \u201cChiss\xe0\u201d.\nArriva la pizza e a quel punto, mi assale lo sconforto pi\xf9 profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia...\nNon ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio!\nN. \u201cMonica? Mi fai assaggiare?\u201d\nM.\u201dCerto!\u201d\nN.\u201d...Mmm...il sapore non \xe8 male ma questa non \xe8 una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. \xc8 proprio triste...\u201d\xa0\nM.\u201c...Gi\xe0...\u201d\n---------------------------------\nQuesta serata per Monica e Nicoletta non \xe8 stata l\u2019unica; altre l\u2019avevano preceduta e altre ancora ne seguirono.\nAd ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso:\n\nMonica elenca ad alta voce al cameriere le sue intolleranze,\xa0\nil cameriere annuisce puntualmente,\xa0\nMonica\xa0 si barcamena nella lettura di menu labirintici (a volte privi dell\u2019elenco degli allergeni)\ndalla cucina arriva l\u2019avviso che l\u2019alimento richiesto non \xe8 disponibile\nMonica si accontenta di \u201cci\xf2 che propone la cucina\u201d nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori\n\n\nE in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All\u2019interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.\xa0 \xa0\nQui in allegato la pizza di Monica', u'entity_id': 824, u'annotation_id': 7773, u'tag_id': 936, u'entity_type': u'post'}, {u'quote': u'Need or problem you are attempting to solve*\nHow can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it\'s a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing.\n\u200bBeneficiary, single person and/or community*\nBeneficiary will be both single persons and the community in a mutual exchange between users affected by the health condition and those who want to participate and make use of the app like doctors, researchers, practitioners and more.\n\nSolution, brief description of the project*\nA first version of the app will be essentially A GUIDED FOOD DIARY.\nObtain information and make your own list of safe foods, referring to a build-in food list of: high-histamine, anti-histamine, anti-inflammatory and cross- check it with a list of typical symptoms and reactions.\xa0The idea is to allow users to add #tag foods, behaviors, and symptoms with the intention to generate knowledge and work in the direction of creating a community and use data-analysis for a second version of the app.\xa0The food diary can help create awareness and be a systematic tool in finding out which foods provoke reactions and to which degree.\xa0It can help to expand one\'s diet, follow elimination diet systems, help re-introduce single foods, and monitor whether these provoke any reactions or not. It can help apply more logic to why certain symptoms occur and when. It can be used to help one\'s general practitioner or specialist in doing more targeted testing. It can be a great support in case of multiple intolerances as well.\n\u200bTechnologies already adopted or that you are planning to adopt*\nWe are a two-women team whit design and development skills. We will start with IOS , and consequently adapt for Android. \n\u200bWebsite (or socials)\nWe are planning a dedicated website that will follow all the steps of the project.\n\u200bLicense, that you are planning to use\nOpen-source\nCurrent status/stage of the project\n\u200b1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community.\n2) Observing the context - UI-UX and Algorithms, comparative analysis and design: by looking at existing apps, like: "Food Intolerances", "All I Can Eat", "Your food Intolerance", and other food intolerance apps, as well as other apps on different health issues, as for example, the menstrual cycle tracking app, \u201cClue\u201d.\n\n3) Sketch out of a wireframe flow for a testable minimum viable product\xa0or prototype. The wireframe will also address issues like users privacy and handling of private health information', u'entity_id': 837, u'annotation_id': 7772, u'tag_id': 936, u'entity_type': u'post'}, {u'quote': u'I find that implementing our app and the concept in the ONG sector dedicated to emergency situations is not only interesting and suitable, but needed and helpful. Since the app was initially designed to ease and facilitate both doctor and the patient in the transitory situations I was considering to contact and involve a friend working in the immigration reception center in Ancona to have more insight, information and clarify any doubts. Let me know what are your thoughts on this', u'entity_id': 33789, u'annotation_id': 7771, u'tag_id': 936, u'entity_type': u'comment'}, {u'quote': u'I may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product:\xa0"Support us, and there will be\xa0more money for health care!". They can do this because\xa0everybody\xa0agrees that funding public health care is a good thing. In this sense, even though it\'s still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it\'s part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.', u'entity_id': 27204, u'annotation_id': 7778, u'tag_id': 938, u'entity_type': u'comment'}, {u'quote': u"I really connect with all you've said here and in particular you're sense of urgency and the imperative of radically different approaches to health and its broader determinants. I have often found myself at well intentioned workshops with rooms full of professionals working hard at designing perfect interventions that will deliver the miraculous \u2018product' of health to our communities. I\u2019m intensely frustrated by the waste of human resources and energy when surely it must be obvious that health is not simply the output of professional \u2018interventions\u2019 (even the clinical language makes me recoil). Surely it\u2019s obvious that health is also fundamentally the natural outcome of healthy communities, relationships and systems - including our political and economic systems.", u'entity_id': 13972, u'annotation_id': 7784, u'tag_id': 939, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 7783, u'tag_id': 939, u'entity_type': u'comment'}, {u'quote': u'As we begin answering questions of autonomy, we are faced with the myriad of material obstacles in our way. \xa0Health, or our lack thereof, can be seen as a crucial weakness in the revolutionary struggle. \xa0We are tied to a \u201cmodern\u201d health system that fundamentally removes our bodies from a larger physical reality. \xa0We are made to become cells in revolt, aberrant genes, failed organs, physicalities riddled with disease. \xa0Disease becomes individualized as \u201chealth\u201d and \u201cwellness\u201d becomes commodified. \xa0States of mental health become symbols of individualized weakness. Propensities toward depressed states, or anxious disorders, and \u201cimbalances\u201d in the brain necessitate chemical intervention, while never addressing the overwhelming emptiness of modern life. \xa0An insane mind is the mind that can adapt to an insane society, and from the news today, we are surely going insane. \xa0Insanity as the only rational response to an insane world, but what contemporary visions of \u201chealth\u201d require of us, in order to perpetuate this economy, is that we be atomized, necessarily taking on our struggles alone, seeing them as the individual product of a weak, chemically imbalanced mind. If we refuse this logic, begin to express the anger necessary for a health that recognizes the truly horrific nature of the time we\u2019re living in and develop shared practices of care that diffuse that isolation, we can begin to grow the collective backbone we so desperately need.', u'entity_id': 521, u'annotation_id': 7782, u'tag_id': 939, u'entity_type': u'post'}, {u'quote': u'current state of health in the US is that when people do get sick, they are forced to access health institutions', u'entity_id': 22039, u'annotation_id': 7781, u'tag_id': 939, u'entity_type': u'comment'}, {u'quote': u'health and wellbeing are properties of social-ecological-context and not a something you "deliver" like a pizza.', u'entity_id': 10231, u'annotation_id': 7780, u'tag_id': 939, u'entity_type': u'comment'}, {u'quote': u"50% of individual bankruptcies are due to a medical bill. More than 50% of Americans can't cover the bill for an ER", u'entity_id': 38787, u'annotation_id': 11882, u'tag_id': 940, u'entity_type': u'post'}, {u'quote': u'If all goes well, we hope our techniques will be available to people with diabetes, especially to help meet the needs of people in resource-poor and lower-income countries. However, it\u2019s hard to say at this point when we might be able to deliver a result useful for making a pharmaceutical-grade product. After the scientific work, which might take a few years, there will be the work of seeking business partnerships and going through more engineering work and the biosimilar approval process in the US. In other areas of the world, it may be simpler, but might also involve more unusual local political considerations. We\u2019re hoping that our work will inspire others to move in parallel alongside us and increase the chances that one group will succeed quickly, and there are some preliminary signs that this is happening, which could yield results sooner. But there\u2019s no doubt we\u2019re at the start of a very long and winding road.\nWe\u2019ve had the good fortune to have many experts in relevant fields reach out to advise us to smooth out our path, but many important questions remain, and the most important ones remain for us to find new answers. Scientists who are reading this \u2013 can we count on you to contribute your expertise in protein expression and purification? Organizers \u2013 can you share with us your vision for expanding these efforts into a movement with participation from parallel groups like ours around the world?', u'entity_id': 552, u'annotation_id': 7787, u'tag_id': 940, u'entity_type': u'post'}, {u'quote': u'Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.', u'entity_id': 22039, u'annotation_id': 7786, u'tag_id': 940, u'entity_type': u'comment'}, {u'quote': u"1) Effective health care - I've lost count of the number of patients who have come in with stories of months or years of expensive National Health Service treatments that made no difference to their conditions, who then see a large reduction in their symptoms after only one or two acupuncture treatments. (Moves to provide acupuncture on the NHS over the last decades have been faltering and half-hearted, and are now suffering from a pushback against anything considered 'alternative' or 'optional' - which is a shame, as it could save the NHS millions).", u'entity_id': 671, u'annotation_id': 7785, u'tag_id': 940, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 12737, u'tag_id': 941, u'entity_type': u'post'}, {u'quote': u'We need a good outline for the theme + fitting sessions. I tentatively assign this task to Woodbine because it seems this is up their street. More than a space where for co-habitation or learning together, they are involved in running a place where activities are directed at providing care - preventative, through peer learning and building capacity which system healthcare lacks.', u'entity_id': 6409, u'annotation_id': 7790, u'tag_id': 941, u'entity_type': u'post'}, {u'quote': u'I\'ve cut and paste the text below\xa0from the web - just wondered if anyone had existing links as it sounds as though there\'s potential connections for OpenCare in general?\n"Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things).\nNuka was developed in the late 1990s\xa0after legislation allowed Alaska Native people to take greater control over their health services, transforming the community\u2019s role from \u2018recipients of services\u2019 to \u2018owners\u2019 of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of \u2018working together to achieve wellness through health and related services\u2019. Southcentral Foundation provides the majority of the population\u2019s health services on a prepaid basis."', u'entity_id': 6441, u'annotation_id': 7789, u'tag_id': 941, u'entity_type': u'post'}, {u'quote': u'To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.', u'entity_id': 855, u'annotation_id': 7764, u'tag_id': 931, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 7765, u'tag_id': 932, u'entity_type': u'post'}, {u'quote': u'Life Guardian, is a health self monitoring, extends the traditional practice of medicine in a new challenging approach using IT and the latest powered technologies to establish a smart and reliable medical network for exchanging valuable information about your health status.', u'entity_id': 35574, u'annotation_id': 11687, u'tag_id': 1900, u'entity_type': u'post'}, {u'quote': u'What kind internal capacities and approaches make up the \u2018software\u2019 that keep a healthy organisation, healthy community or healthy societies humming with human flourishing?', u'entity_id': 6304, u'annotation_id': 7791, u'tag_id': 942, u'entity_type': u'post'}, {u'quote': u"We are a flood-prone nation, so in rural Bangladesh, most people build their homes out of tin, instead of mud. About 70% of Bangladesh's population lives in these homes.\xa0But the problem with these tin huts is that they get unbearably hot in the summer, especially in northern and central Bangladesh. I\u2019ve been in these huts. It\u2019s like being in a sauna in the Sahara.", u'entity_id': 33744, u'annotation_id': 7792, u'tag_id': 943, u'entity_type': u'post'}, {u'quote': u'Finally, i am planning with Hamdi Achour, an active member and the only ambassador of the international association VASCAPA (Vascular Anomaly Patient Association in Brussels, Belgium, to open a branch of VASCAPA in Tunisia. So, we can help patient with vascular anomaly from Africa and the Middle East', u'entity_id': 35574, u'annotation_id': 11689, u'tag_id': 1902, u'entity_type': u'post'}, {u'quote': u'So this is a cheap herbal remedy. It grows really well in these tropical regions, and quite fast too. So it does not take up a lot of cost in production, except for its processing which could cost quite a bit. But this advantage allows us to produce en masse and a cost efficient rate, so we are able to give it out to the public at incredibly cheap prices - cheap enough to have daily supplies\xa0affordable\xa0by just anyone. Since these are teas in tea bags, it makes it even better.', u'entity_id': 22191, u'annotation_id': 7794, u'tag_id': 944, u'entity_type': u'comment'}, {u'quote': u'My name is Ivan Ezeigbo. I am 20 years old, and currently a sophomore at Minerva Schools at KGI, California, USA. I was inspired by Monica Marcu\u2019s book, The Miracle Tree, to research with a team back in Nigeria on the blood regulatory power of the contents of the leaves of a very medicinal plant. It is a herbal plant that has just drawn a lot of attention in its potential to cure over three hundred ailments. This is the Moringa Oleifera. We experimented on Wistar albino rats. The idea was to inject alloxan intraperitoneally to all groups of Wistar albino rats with healthy working pancreas (alloxan increases blood sugar level, thus inducing hyperglycaemia or making them \u201cpseudo-diabetic\u201d). The bioactive agents of moringa leaves were extracted with ethanol and water, and two groups of the rats were treated each with these contents. An additional group was treated with synthetic insulin (insulin is a natural blood regulatory hormone that brings down blood sugar level), and all three groups were observed. We discovered that the group of Wistar albino rats treated with the bioactive agents of the moringa leaves extracted with water had a SIGNIFICANTLY SIMILAR blood sugar level as those treated with synthetic insulin, and less significant with those treated with ethanol. This unearthened two truths. First, moringa has powerful blood regulatory effects, almost equivalent to the natural insulin. Secondly, water is a better extraction agent than ethanol, unlike the case for many other plant leaves. Aside its blood regulatory power, moringa also cures diarrhea, and many other bacterial and fungal infections. It is also a healthy store for numerous nutrients, vitamins and amino acids. It also thrives very well in these tropical regions of Africa, especially the Southern Nigeria. Armed with this knowledge, I took up the entrepreneurial project of making moringa teas using tea bags because this would not only help a lot of poor people in Nigeria, and Africa in general, who cannot afford or obtain quality health care, but would be a cheap and accessible way of maintaining a healthy lifestyle. Furthermore, since water is a good extraction agent for moringa, moringa teas would provide consumers the maximal health benefits. Even though, I have not had the necessary funding and have been self-funding this project, my motivation to help people live longer and healthier has kept this dream going, and I have not tired out in bringing this to fruition. I am still conducting researches and experiments on my tea, and I have just purchased about two plots of land for moringa farming. I would still need to set up an industry where these teas will be processed.', u'entity_id': 725, u'annotation_id': 7793, u'tag_id': 944, u'entity_type': u'post'}, {u'quote': u'On the matter of "the crowd": this is prevalent on so many levels. Going against this is at the core of why\xa0we do what we do in science communication and engagement. The narrative is always "the public" and "science" as seperate entities. This\xa0vocabulary already skews everything at the base. There\'s always some form of elitism, paternalism, laziness in justifying research, general lack of insight in the role of science in society and so on. Even, and most\xa0harmfully, from those that work in the exact departments dedicated to "linking\xa0science and society", often unintentionally.', u'entity_id': 27222, u'annotation_id': 7797, u'tag_id': 946, u'entity_type': u'comment'}, {u'quote': u'The big difference with a vertical organization is that in a flat organization those three categories aren\u2019t intended. Where you have specific roles inside a hierarchical organization build around power the thinker will always be above the prepper that will be above the doer. When you see everybody as equal we try to divide also the categories equal, but there is the catch: not a lot of people have throughout their lifetime chosen to equally distribute their skill points.', u'entity_id': 785, u'annotation_id': 7796, u'tag_id': 946, u'entity_type': u'post'}, {u'quote': u'That we can strive for prevention, but we must address the material reality of how people live.', u'entity_id': 29958, u'annotation_id': 7803, u'tag_id': 947, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 7802, u'tag_id': 947, u'entity_type': u'comment'}, {u'quote': u'Economic/Practical: How do I pay the rent?\nSocial/Psychological: Who am I in the eyes of others?\nDirectional: What do I get out of bed for in the morning? And where do I see myself in the future?', u'entity_id': 493, u'annotation_id': 7798, u'tag_id': 947, u'entity_type': u'post'}, {u'quote': u'1) Question 1\xa0(Emad): How to\xa0enroll\xa0in any position within the academic world (or other) to be able to stay in a safe society like\xa0ours\xa0until\xa0they (him and his family) can return back home.\xa0Being\xa0Iraqi and at the end of a PHD in medical science and student visa in England. He is also looking to support his family\xa0financially.\n\n2) Question 2 (Amal): How to find any position within\xa0the academic world, for somebody, on the way to Belgium, on a "family reunion visa", to be able to spend, the years waiting for the war to end, sensibly, by investing in her knowledge and-or career. As she will be supported by the Belgian state financially, money is a little\xa0less of an issue for her.\n\nAs they are not in a position of demanding things they would\xa0of course greatly\xa0accept any solution or\xa0proposition\xa0\n\nI guess what I am looking for most is;\xa0\n\n\xa0* What kind\xa0of\xa0opportunities\xa0exist\xa0being\xa0in their specific situation?\n\nWhere do these two individuals have to start\xa0their\xa0search for having the best chance\xa0of\xa0finding any job or position\xa0within\xa0the academic world?\n\nI hope this makes things more clear. If not, shoot\n\nI have asked both to give me more specifics on\xa0their careers.\n\nCan\'t wait for your return.\n\nMaria', u'entity_id': 16990, u'annotation_id': 12754, u'tag_id': 2083, u'entity_type': u'comment'}, {u'quote': u'Hello peeps,\n\nThis is my first post in this community\u2026.\n\nSo no completely sure yet how it works or what kind of responses I will get.\n\nHere my story and my question:\n\nBecause I took into my household 1,5 years ago, a 17 year old Iraqi boy (refugee) I am becoming, a little bit against my own will" src="https://www.facebook.com/images/emoji.php/v8/zfb/1/16/263a.png">, a go to, ask to, for other Iraqis, around the globe\u2026\n\nHis mother, on her way to Belgium, Brussels, on a \u201cfamily reunion visa\u201d, was professor in History at the Mosul university. His uncle, doing a PHD in medical micro biology \u2013 molecular micro biology - immunity in England, Leicester.\n\nThey are both asking me for help in finding\xa0a job at universities or doing a (another) PHD in Europe.\n\nHis uncle, so he does not have to return to Iraq after his PHD finnishes in Leicester. His mother, to feel use full while waiting to go back to her country one day.\n\nSo her my question: Where, how and what can they do to have the best results in their search for a university job or sudy? As I never did a PHD or worked at universities it is still a blank canvas for me.\n\nThanks for taking the time for providing me with tips and tricks.\n\nMaria', u'entity_id': 831, u'annotation_id': 12752, u'tag_id': 2083, u'entity_type': u'post'}, {u'quote': u'School/university improvement & quality evaluation', u'entity_id': 6293, u'annotation_id': 12757, u'tag_id': 2083, u'entity_type': u'post'}, {u'quote': u'Hi @mariekebelle\n\nI may need a bit more information before even trying to share any suggestion...\n\nFirst thing, I would like to ask you to confirm my understanding.\xa0There are two separate issues that would need to be faced:\n\n1) how to enroll in a doctorate while being classified a refugee [this one should be reasonable]\n\n2) how to enroll in a doctorate as an already senior professional\n\nThe latter\xa0is a bit complicated. In my limited experience, most EU doctoral programs are biased towards young, highly competitive candidates. Usually, more senior individuals access doctoral tracks by tertiary funding (e.g. the company hiring them covers the full university costs, and maintains them on payrol).\n\nCan you share with us how the idea of a PhD was selected, among other alternatives? Is it for the student status/visa? Or for the need to receive economic support? If their titles/certificates are at hand (which I presume, since they do not want to enrol in a bachelor, but in a doctorate), why not seeking a professional position (lecturer, lab technician, ...)? If they have tried and failed, could you share a bit more about this, to figure out what is the situation...\n\nIn general, no one size fits all in academic careers... It\'s my humble opinion, but for the double issue you are bringing to our attention,\xa0I\xa0am somewhat skeptical that anyone will be able to say "get in touch with X" or "look up on Y"... each solution will be custom tailored on the history and professional profile of the person. I hope to be able to help you doing the latter.', u'entity_id': 14667, u'annotation_id': 12749, u'tag_id': 2083, u'entity_type': u'comment'}, {u'quote': u"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.\xa0\n\nI think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?\n\n\nhttps://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.", u'entity_id': 19695, u'annotation_id': 7812, u'tag_id': 2083, u'entity_type': u'comment'}, {u'quote': u"Unfortunately the\xa0 community interactions are the goal and not the mean. I'm doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus.", u'entity_id': 11219, u'annotation_id': 7811, u'tag_id': 2083, u'entity_type': u'comment'}, {u'quote': u'.\xa0\nThis was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical)\xa0well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on\xa0mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.', u'entity_id': 11003, u'annotation_id': 7809, u'tag_id': 948, u'entity_type': u'comment'}, {u'quote': u"@Village-Psy it's a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we'll have the chance to care about us better and having fun as you suggest.", u'entity_id': 24150, u'annotation_id': 7808, u'tag_id': 948, u'entity_type': u'comment'}, {u'quote': u"In\xa0our current line of work there is some of the persistent, low-level panic of the artist's work, because there are fads in consultancy, and people hustle, and it's important to be seen in the right places. But the market is NOT winner-takes-it-all. Companies\xa0need help, and they can't all get the top ten guys in the business, because those guys can only sell 100% of their time.", u'entity_id': 32271, u'annotation_id': 7807, u'tag_id': 948, u'entity_type': u'comment'}, {u'quote': u"I don't know if market skewness explains it all - it certainly makes sense. But from what people are saying here, it also has to do with professional identity and some ideas attached to it telling you what you should do as an artist or how to carry yourself in the world -which\xa0creates anxiety.", u'entity_id': 32237, u'annotation_id': 7806, u'tag_id': 948, u'entity_type': u'comment'}, {u'quote': u'particularly that of artists sharing some of those stress-inducing working conditions with non-artists. You mention art workers; where I come from (Italy) there is similar talk around freelancers.', u'entity_id': 32197, u'annotation_id': 7805, u'tag_id': 948, u'entity_type': u'comment'}, {u'quote': u"I can only speak for the contemporary art scene, which is the one I\u2019m part of and not for theatre or other subdomains of the creative field. I see two main directions in the discussion so far.\nFirst, there\u2019s the question of creativity and anxiety being intertwined, and how to identify the moment when this anxiety crosses over to a dangerous zone for the artist; also, if this link is a given, how would we go about trying to keep an artist in the safety zone without hindering the creative dimension. Going back to what has been noted so far, the idea of the artist as troubled soul is rooted in the romantic definition of the artist, which I think has long been overcome within contemporary art (and made room for other sources of angst). Nevertheless, apart from this dated, unhealthy perspective, there might be an actual connection between the artistic predisposition and emotional volatility. I haven\u2019t read any studies on this topic, though I suppose this is a strong area of research and only after making sense of the results we might be able to think of strategies for improvement. These might be seen as issues concerning the psychology of arts, which I\u2019m not at all familiar with.\nThen, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I\u2019m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist\u2019s own\xa0sense of identity as an artist), market/ commercialization contamination and so on.\nAt one point in his article The Curatorial Muse, Michael J. Kowalski writes: \u201cIt is acknowledged, though not often discussed in polite company until the third drink, that the arts are defined by the same Darwinian savagery as any another profession. It is also acknowledged that the aspiration of art to beauty and truth is a pious fiction, but in the best possible sense of the word. Finally, and crucially, it's acknowledged that these two characteristics of art are seriously and permanently at odds with one another\u201d. - (http://www.contempaesthetics.org)\nOne important idea here is to note that these are not concerning artists only, but art workers in general. It\u2019s difficult for me to say if the levels of anxiety are higher in art that in other professions. A good point was made earlier that these might be found in any other field. My impression is, though, that fields in which creativity is profoundly linked with identity will always make for a more stressful environment. And for those that already identify with the psichological pressures of creativity, this later layer might be just too much to handle.\nJust a few more personal notes: in my discussions with artists I found that many drop out from University because they can\u2019t take the pressure. It might be helpful to note that the myth of the emergent artist will bring the issues I identified before as pertaining to the sociology of art very early on in an artist\u2019s life \u2013 from the first years of university. This young age, one that is related to learning, experimenting, trial and error, finding one\u2019s path etc., has become a battlefield for launching careers. (My one experience brings this even earlier in life, being a child and a teenager trying to become a professional musician. I am one of those who could not handle the difficulties of a musical career at such an early stage in my life and lacking a good support system, so I quit. At present I work as a passionate art professional - curating, arts management, teaching, cultural PR - and I find the field highly demanding, but I feel I have more resources in myself to work my way through, than\xa0I did when I was a young musician.)\nAnother key point in artists\u2019 lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.\nThe other day I was listening to Sarah Thornton, a sociologist of art who was pointing out that ever since Duchamp, the freedom of the artist to fashion herself as an artist is a demigod position that puts a lot of pressure especially on artists finishing studies, whom\xa0are very much aware of the responsibility of designating themselves as artists. Many would not use the word artist, Thornton notes, and when asked what they do, they say \u201cI do work\u2026\u201d\nOf course, older age comes with its own anxieties within the arts, namely the obsession with youth...", u'entity_id': 32092, u'annotation_id': 7804, u'tag_id': 948, u'entity_type': u'comment'}, {u'quote': u'Community groups often focus on single questions, spaces, conflicts. They often react under economic and time pressure to immediate problems. They act within marginalized or weak political and economical communities. They deal with institutions and stakeholders with more time, much power, and resources whereas they rely on limited personal resources or precarious funding. Simultaneously there are a lot of joy, learning and personal empowerment involved as well as a sense of a meaningful life and community relations. However, the risk of failing is high, which can lead to frustration and disintegration.', u'entity_id': 507, u'annotation_id': 7810, u'tag_id': 949, u'entity_type': u'post'}, {u'quote': u'At the moment, we are proceeding slowly and cautiously. I think the principle of "First do no harm" applies - we are not about to go out and buy a load of care homes and think we can instantly transform them. We are working with people in the field and looking for existing homes with open-minded owners\xa0 we can work with.', u'entity_id': 27642, u'annotation_id': 7813, u'tag_id': 951, u'entity_type': u'comment'}, {u'quote': u"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post \u2013 seems like great work, congrats!\n\nThe idea of understanding one's\xa0own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes\xa0out), or a many-to-many interaction between users. Can user A see the diary of user B? Do\xa0they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?\xa0\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentpeer-to-peer\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 8578, u'annotation_id': 12758, u'tag_id': 2084, u'entity_type': u'comment'}, {u'quote': u'Hi\xa0Alberto, hello Alessandro,\nhow nice to find feedbacks! happy to try to answer to your questions. Sorry Alberto, I missed your\xa0comment and noticed it only now. As Alessandro points out the project is divided in several phases.\nIn the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:\xa0\nCarrots, Broccoli, Fennel = Low Histamine\nTomato, Orange, Kiwi = High Histamine\nCoffe, Garlic, Grapes =\xa0sometimes tolerated\nThis are informations\xa0that\xa0anyone can find online but while at the supermarket or while choosing\xa0your ice cream flavour, it is handy to have it quickly ready all together in an app.\nThe first phase of the app will also contain a list of\xa0Common symptoms: Headaches, migraines,\xa0Vertigo, dizziness,\xa0Abdominal cramps ecc.\nAnd it will allow the user to check symptoms and associate them with foods into a diary/calendar system.\nThis is handy in case the user wants to reintroduce a food or wants to monitor the effects\xa0of some food that are sometimes tolerated.\nIn the first phase of the app the system will not ask many questions nor give too many informations.\xa0It will mostly be a structured tool for annotation that will empower the personal\xa0awareness of the user.\n\nThe app \u201cClue\u201d (menstrual cycle tracking), is a very good example in this terms, it doesn\u2019t\xa0do much next to allowing women to structurally note down dates and\xa0symptoms, yet it is a powerful tool of awareness.\xa0\nThe\xa0data-analisys will only enter \xa0in the\xa0second phase. For this there will be some work to be done to design the interaction between what we find trough the data, the assumptions we already have, our approach on care, and the collaboration with practitioners and medical experts.\xa0\nI\xa0hope\xa0that\xa0I\xa0have answered your questions and please let me know,\xa0I am happy to answer if there are more questions.', u'entity_id': 20905, u'annotation_id': 7815, u'tag_id': 2084, u'entity_type': u'comment'}, {u'quote': u"To look at care as a life practice. We take a health issue like histamine intolerance as a concrete example for which it is clear and mandatory that food intake and lifestyle are determining the severity of the health condition. In defining \u201cCare\u201d I would like to work around the question: Is our diet and lifestyle shaped around products or can we brake out of this path and empower ourselves in designing products - an app in this case - that help us define which food and lifestyle combination is better for each unique person? Can a tool help eventually finding one's way to still eat or drink that food by combining it differently and so on?", u'entity_id': 837, u'annotation_id': 7814, u'tag_id': 2084, u'entity_type': u'post'}, {u'quote': u"Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties\xa0is a city neighbourhood of opportunities and innovation, but its history -\xa0positive and negative -\xa0pervades. Although having undergone much urban regeneration as well as gentrification,\xa0the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing\xa0in the Liberties today.", u'entity_id': 841, u'annotation_id': 7824, u'tag_id': 953, u'entity_type': u'post'}, {u'quote': u"For most of humanity's history, care services \u2013 which today we call health and social care \u2013 were provided by communities: family members, friends and neighbours would check on each other to make sure everyone was fine, keep an eye on each other's children or elderly parents, even administer simple medical treatments. Starting from the second half of the 20th century, developed countries switched to systems where the care providers were professionals, working for the government and modern corporations.", u'entity_id': 5510, u'annotation_id': 7816, u'tag_id': 953, u'entity_type': u'post'}, {u'quote': u'In 2014, I, Alberto Rey, had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800\u2019s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.\xa0 My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset while creating insafe health issues to underserved populations.', u'entity_id': 576, u'annotation_id': 7826, u'tag_id': 954, u'entity_type': u'post'}, {u'quote': u'Hello everyone\n\nI am a full-time community mental health nurse based in Ormskirk Lancashire. Since 1998 online Have championed a conceptual framework - Hodges\' model which was created to facilitate person-centered, holistic, integrated care and reflective practice. Currently I am researching the model at Lancaster University in Technology Enhanced Learning. My Part 2 project involves evaluating the model by creating a new web resource to prototype specific content types, gather data and create some research interest.\xa0I plan to use Drupal to create my research platform.\n\nI have just posted news of OP3N on my blog "Welcome to the QUAD"\n\nhttp://hodges-model.blogspot.co.uk/\n\nwhich also lists a bibliography:\n\nJones, P. (2004)\xa0The Four Care Domains: Situations Worthy of Research. Conference: Building & Bridging Community Networks: Knowledge, Innovation & Diversity through Communication, Brighton, UK.\n\nJones, P. (2008)\xa0Exploring Serres\u2019 Atlas, Hodges\u2019 Knowledge Domains and the Fusion of Informatics and Cultural Horizons, IN Kidd, T., Chen, I. (Eds.) Social Information Technology Connecting Society and Cultural Issues, Idea Group Publishing, Inc. Chap. 7, pp. 96-109.\n\nJones, P. (2009) Socio-Technical Structures, the Scope of Informatics and Hodges\u2019 model, IN, Staudinger, R., Ostermann, H., Bettina Staudinger, B. (Eds.),\xa0Handbook of Research in Nursing Informatics and Socio-Technical Structures, Idea Group Publishing, Inc. Chap. 11, pp. 160-174.< br /> Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination.\xa0International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311.\n\nYou\xa0may find this model relevant to your respective projects, if so please get in touch...\n\nIf you have any key papers, reports or conferences I\'d be delighted to hear of your news.\n\nBest wishes in your work.\n\nPeter Jones Community Mental Health Nurse CMHT Brookside Aughton Street Ormskirk L39 3BH, UK\n\n& Graduate Student - Lancaster University: Technology Enhanced Learning Blogging at "Welcome to the QUAD" http://hodges-model.blogspot.com/ http://twitter.com/h2cm', u'entity_id': 676, u'annotation_id': 12762, u'tag_id': 955, u'entity_type': u'post'}, {u'quote': u'@Alberto, thanks for the comments. \xa0While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health. \xa0At this point in NYC, there is still infrastructure for primary care and physical care within institutions. \xa0In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more "primary care" functions. \xa0But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health. \xa0In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here. \xa0We are thinking of treating acute mental health episodes, but to form the foundation for "preventative" communal mental health.', u'entity_id': 26065, u'annotation_id': 7840, u'tag_id': 955, u'entity_type': u'comment'}, {u'quote': u'Mental and spiritual well being such as that fostered by @Bernard "Creating situations for healthy experiences that facilitate collaborations\u201d;', u'entity_id': 6462, u'annotation_id': 7839, u'tag_id': 955, u'entity_type': u'post'}, {u'quote': u'Specific objectives of the course are: \uf0b7 Introduce holistic model of stress and raise understanding of stress causes, mechanisms and effects', u'entity_id': 6293, u'annotation_id': 7838, u'tag_id': 955, u'entity_type': u'post'}, {u'quote': u"I really connect with all you've said here and in particular you're sense of urgency and the imperative of radically different approaches to health and its broader determinants. I have often found myself at well intentioned workshops with rooms full of professionals working hard at designing perfect interventions that will deliver the miraculous \u2018product' of health to our communities. I\u2019m intensely frustrated by the waste of human resources and energy when surely it must be obvious that health is not simply the output of professional \u2018interventions\u2019 (even the clinical language makes me recoil). Surely it\u2019s obvious that health is also fundamentally the natural outcome of healthy communities, relationships and systems - including our political and economic systems.", u'entity_id': 13972, u'annotation_id': 7837, u'tag_id': 955, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 7836, u'tag_id': 955, u'entity_type': u'post'}, {u'quote': u'We are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions \u2013 around complex protocols for under 5 child health, for example. We\u2019re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows.', u'entity_id': 564, u'annotation_id': 7835, u'tag_id': 955, u'entity_type': u'post'}, {u'quote': u'While we still working on figuring out a lot of how we address student well being (and build this university) it\u2019s become clear that the future of student care must be holistic and not just reactive.', u'entity_id': 724, u'annotation_id': 7834, u'tag_id': 955, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 7833, u'tag_id': 955, u'entity_type': u'comment'}, {u'quote': u', despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.', u'entity_id': 493, u'annotation_id': 7827, u'tag_id': 955, u'entity_type': u'post'}, {u'quote': u'Street Nurses (Infirmiers de Rue): How do we help people living in the street for more than 10years?\nThe non-profit organization Street Nurses was formed in April 2005, following a year and a half of field studies. Two Nurses realized that, despite there being many medical and social organizations in Brussels (Belgium), there were still a great number of homeless people in the Belgian capital. They noticed that personal care and health were major issues for homeless people and were convinced that they could solve these problems.\nThe organization has three primary goals: field work, trainings and tools.\nField work: Street Nurses takes to the streets to meet patients directly in their environment, without asking for payment. We take care of them, earning their trust, and we motivate them to take charge of their personal care and health by accompanying them to specific care facilities, by actively listening to their needs and giving them advice.\nOur work is also based on prevention and the dissemination of health information. We are medical and social intermediaries between, on the one hand, persons who live in an extremely precarious situation and on the other, healthcare professionals and social workers.\nThe follow-up of patients ends with the integration of the patient in accommodation where he or she is regularly supported by professionals and volunteers of Street Nurses, and a network of social associations.\nWe aim to assist persons who live in extremely precarious situations by offering them a home and by permanently reintegrating them into society. This medium- to long-term goal is achieved by improving the living conditions and the hygiene of these individuals, as well as their self-esteem.\nTrainings: Street Nurses organizes different types of awareness-raising sessions and training courses in French or Dutch on \u2018hygiene and precariousness\u2019 and \u2018basic first aid\u2019.\xa0 These trainings are address to any target group that is likely to come into direct contact with homeless people or that works with people who live at home and have major hygiene issues. Our nurses organize sessions on site \u2013 in schools, in the offices of security guards and social workers, clinics etc.\nTools: Street Nurses develops prevention tools and information packages to raise awareness among homeless persons about the importance of personal care and health, to give them better access to care and to facilitate their medium - to long-term rehabilitation. Certain tools, however, are aimed at raising awareness among the general public about the situation of homeless people. Examples: list of showers in Brussels, map of fountains and free public conveniences, symptoms and interventions in case of hypothermia, Frostbite prevention poster, Heat stroke prevention poster\nSince 2005 the non-profit organization Street nurses has grown and its projects are continuously developed. Today, Street Nurses has the equivalent of 13,84 full-time staff members and approximately 60 volunteers.\nWe saw the call by the Mac Arthur Foundation too, but we tough we were way to small to try and get it so we were very happy to receive the information trough DoucheFLux that this kind of initiative exists. We are mostly organized to search every year for new funds. We try to find the good balance between private, public and foundation funds but because of our high costs of wages it is difficult to fund foundations that are willing to support us. Most of them give only money for material or structural projects, not for day to day tasks, and that is what Street Nurses is all about.\nSince a couple of years we opened our work to an even more inclusive service. We have a collaboration going on with Social housing agencies in Brussels to try to give homeless people a decent home at the end. We participate to the program Housing First Brussels.\nWe have a good network within the association field in Brussels, but when we go to specific funds we are not transcribed in their goals. For example, they help by giving furniture for kids, or funds for kid projects. But our main audience, people living on the street between 8 and 20 years is often forgotten.\nSomething rather unique in the social field is that we have one of our colleagues that is paid by two different organizations, ours and another non-profit organization. This makes it possible to create a solid bridge between both organizations and have a great information flow. We think there is bright future is this way of work.\nFinally we organize a colloquium the 20th of October in Brussels that has as goal to eradicate homelessness in Brussels for ever. With the mindset: if even we can find homes for the most difficult audience, you can too! We want to share our experience in the field. It takes time and dedication for each of our people to do the whole process, from getting the confidence, to willing to have a stable home. But we want to show that the hard work also has direct results, and if we rally our forces we can go for a total abolishment of homelessness in Brussels!', u'entity_id': 767, u'annotation_id': 7854, u'tag_id': 956, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 19759, u'annotation_id': 7853, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 7852, u'tag_id': 956, u'entity_type': u'post'}, {u'quote': u'Alkasem: i have question to all of you: where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:\xa0\n\nthe core family concept has been broken down - after uni and growing up you have to carry yourself; so there is no glue which keeps family together\n\n\nin North Africa systems are weak -so there has always been a cultural support; whereas in the West the system is supposed to take care of everything\n\n\nHere (in the West) you are free, but alone!\n\n\n"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care (twitter link)', u'entity_id': 541, u'annotation_id': 7851, u'tag_id': 956, u'entity_type': u'post'}, {u'quote': u"(California) launched a service called SHWASHLOCK (SHowers, WASHing machines and LOCKers). The idea for this service had come from a bunch of residents, some of whom were homeless, hanging out on the city's Public Electronic Network (PEN). At the time, of course, there was no Internet: PEN was a civic network accessible locally. SHWASHLOCK is the first public service designed on a computer network that I know of.\nSanta Monica's libraries had terminals connected to the PEN, and some homeless residents\xa0were using the libraries. This is how homeless and homed residents were able to come to share a common hangout, and design together a simple, but very useful service.\xa0\nIt turns out that online spaces are quite good at removing some of\xa0the social markers that make interaction across social groups so awkward (and more power to you, @Laurent_d'Ursel , for overcoming that awkardness!). In the words of Donald Paschal, one of the homeless residents:\xa0\n\u201cPEN is a great equalizer. No one on PEN knew that I was homeless until I told them. After I told them, I was still treated like a human being\u2026 the most remarkable thing about the PEN community is that a City Council member and a pauper can coexist, albeit not always in perfect harmony, but on an equal basis.\u201d\nMore info on SHWASHLOCK and its implications for public participation online:\xa0http://www.cottica.net/2012/08/29/the-computers-of-the-excluded/", u'entity_id': 15043, u'annotation_id': 7850, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 727, u'annotation_id': 7849, u'tag_id': 956, u'entity_type': u'post'}, {u'quote': u"It's become clearer that homelessness correlates much more with inequality (especially affordability in housing)\xa0than with a country's\xa0wealth, which is what might explain\xa0cultural shocks\xa0as one moves from east to west.. I'm reminded of a friend of mine studying in the US who simply couldn't get past having seen so many people living in the streets in\xa0San Francisco.\nI would be definitely interested to read about the specifics of family\xa0dynamics in Laos, so if you ever find the time do go for it.", u'entity_id': 29547, u'annotation_id': 7848, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u"During my short time in Laos, I couldn't help noticing analogies to this story. If anyone finds this useful, I can\xa0try to condense some other impressions and stories from Laos.\nI ever only saw one beggar. He was a physically disabled man, unable to stand, having to crawl\xa0through\xa0the streets. At different times I saw him receiving food from the small food stalls on the street.\nI had befriended\xa0a local woman, let's call her Babs,\xa0through a common friend and I asked her about this man. Babs\xa0immediately knew who I meant. She said that there were not many beggars and homeless people\xa0in Savannakhet, a city of 120,000 people and second largest city\xa0in Laos. There used to be many people asking for money on the streets a few years earlier.\xa0Most of them came from large, poor\xa0families outside the city. One or two family members would go to the city to beg and send some money back home. Recently, the local government chased those people away back to the rural areas.\nThe\xa0reasoning was\xa0that the families\xa0were able to sustain themselves growing crops on their small piece of land, so they should not come begging in the city. Responsibility to take care of each other rests\xa0on\xa0the family. This is the situation for most of the Lao: they can sustain themselves but they have almost nothing more and live in poverty. Begging in the city is one of the ways out.\nBabs said that now, there only remain a few homeless people\xa0who have mental or physical disabilities and no family to rely on. In other words, those who have no other options. The police condones them and they are usually helped by the community, like getting food from food vendors.\nBabs mentioned that there were plenty of mentally and physically disabled people\xa0due to a poor medical system, pointing out especially the issue of giving birth in rural areas. Most of them are cared for by their fam", u'entity_id': 29080, u'annotation_id': 7847, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u'About people sleeping in the streets:\nOne of the first things I noticed in Brussels is that a lot of people are living in the streets. Why are they living in the streets, don\u2019t they have families to take care of them? Where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen?\nSome of the participants responded later on:\xa0\n\nthe core family concept has been broken down - after uni and growing up you have to support yourself; so there is no glue which keeps family together\n\n\nin North Africa systems are weak - so there has always been a cultural support; whereas in the West the system is supposed to take care of everything\n\n\n"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care\xa0(twitter link)\n\nAbout trust\nEverything moves around friendship. I have the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust.\xa0And without trust no skill can be shared. How can we create a better health system if we need all kind of difficult systems to create the trust that isn\u2019t there really.\nIn less then one day, Alkasem showed us that the things we find sometimes really obvious aren\u2019t at all for everybody. He inpacted a lot of the discussions with his point of views and made it obvious that sometimes we are still a bit too etnocentric about the way we want to design solutions. Having completly different cultural heritages at the table makes a discussions so much richer.', u'entity_id': 790, u'annotation_id': 7846, u'tag_id': 956, u'entity_type': u'post'}, {u'quote': u'homelessness', u'entity_id': 29958, u'annotation_id': 7845, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 7844, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u'While continuing to work with clothes, I now focus on providing school items for children and the campaign has shifted focus. From just catering for refugees, we also provide care for native homeless people. Through a Facebook page https://www.facebook.com/groups/519478964902645/, we are trying to organize volunteers who adopt the schooling needs/items of children in need. These needs may be covered through a donation of items or money, and this is open to everyone. So far, the stock gathered so far through donations, is enough for about 250 kids. In parallel, I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.', u'entity_id': 737, u'annotation_id': 7843, u'tag_id': 956, u'entity_type': u'post'}, {u'quote': u"This is not directly health care, but you can argue prevention is better than needing to cure. E.g. if people are living on the streets or extreme poverty where they can't keep warm and dry, and wash, of course they are more like to get sick and have many health problems.", u'entity_id': 10261, u'annotation_id': 7842, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u"What about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.", u'entity_id': 10261, u'annotation_id': 7841, u'tag_id': 956, u'entity_type': u'comment'}, {u'quote': u'If you want to personalize with few resources - try making your own paint. I recommend you use non-toxic pigment (and still use masks - just to spread awareness), and there are a bunch of non-toxic to fairly harmless liquids to mix stuff into (e.g linseed oil*). You can get a lot done with mortar and pestle for personalization scale.', u'entity_id': 23108, u'annotation_id': 7855, u'tag_id': 957, u'entity_type': u'comment'}, {u'quote': u"Hello\xa0@IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real\xa0strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which\xa0you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.\xa0\nI wish you all the best in your efforts.", u'entity_id': 8154, u'annotation_id': 7859, u'tag_id': 958, u'entity_type': u'comment'}, {u'quote': u'Since my teenage years I have had swings from wildly optimistic grandiose hopes to rock bottom loss of all vestiges of hope. Suicidal ideation can prosper in the absence of hope. Luckily during many of the extreme lows I just try and go into hibernation mode, having a strong belief that if I just get through the oncoming weeks and months then things will have to improve.', u'entity_id': 562, u'annotation_id': 7858, u'tag_id': 958, u'entity_type': u'post'}, {u'quote': u'Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for\xa0people working together and sharing space, especially if they are "living on the edge". Change is difficult and every group\xa0liable to conflict. E.C. Whitmont writes in The Symbolic Quest that \u201cThe seeming inevitability of conflict among the archetypal "powers" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.\u201d There\'s a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.', u'entity_id': 553, u'annotation_id': 7857, u'tag_id': 958, u'entity_type': u'post'}, {u'quote': u"How can we get better as groups at learning from the experiences we go through? I have been wondering about new approaches to care and this question has been much in my mind since interviewing members of the public during a project about the \u201cword on the street\u201d in Liverpool in 2015. It was a sobering month in which I came to know personally\xa0just how disaffected and disenfranchised the public felt about anything changing for the better in England.\xa0 In a comment on the Edgeryders community call on improving\xa0how we support each others mental and spiritual health, I wondered if \u201ceveryone who lives in a distributed area is in some way involved in processing the emotions experienced in that place\u201d. I feel a great potential for technological networks to create rituals and bring people together to process experiences in new\xa0ways. Generally, I'm talking about creative\xa0networks for coming back to life: networks that invite people into a social experience to care about themselves and other people, to keep hold of their hopes, to understand beyond their own spheres of experience and to find\xa0support\xa0in being\xa0the magician of their own life. This is speculative stuff, I realise, so I\u2019ll\xa0anchor my offering to this strand in real examples and share work that I know of and am making.", u'entity_id': 553, u'annotation_id': 7856, u'tag_id': 958, u'entity_type': u'post'}, {u'quote': u'As long as I remember we have been told to eat healthy /\xa0As long as I remember hospital food has had the reputation of being awful\nAs long as I have been having my lunches in a hospital I\u2019ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc.\nAs long as I have been having my lunches in a hospital the\xa0meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit.\nSo starting at the hospital we are told one thing and given the opposite.\nThe logical conclusion is that change should start at the hospital. It same goes for\xa0schools down to kindergardens.', u'entity_id': 11833, u'annotation_id': 7863, u'tag_id': 959, u'entity_type': u'comment'}, {u'quote': u'Yes, this is indeed a good solution for getting treatement.\n\xa0But not for surgeries, or patiens coming from all over the country to the main universitary medical center, in the capital of Romania, patiens with special cases who need the most skilled doctors arround them until they have a diagnose.\n\xa0Actually, the current Minister of health, Vlad, is also coming up with solutions to rebuild the hospitals into viable clean insititutions.', u'entity_id': 21302, u'annotation_id': 7862, u'tag_id': 959, u'entity_type': u'comment'}, {u'quote': u'Yes, @Alberto, there were many times when I was just travelling to the hospital to get my IV and then go home. There are also private clinics where people just go and receive the cytostatics.\xa0Though, for surgeries and patiens from all over the country this is not a solution...', u'entity_id': 16281, u'annotation_id': 7861, u'tag_id': 959, u'entity_type': u'comment'}, {u'quote': u'I totally agree though - there are a lot of big trends - very many of which would point to moving the hospital to the patient and not the other way around.\n\nIf Romania has a bad stationary hospital scene, then one could see that as very good conditions to make it a well funded (EU level?) pilot project that looks at devolving care into communities further. Romania has a very strong IT backbone which would certainly help as well.\nSome aspects of such a care system could also be funded from defense money - because mobile care (and operating under overload) are things they have to handle as well. But that is only one aspect.\n\xa0@Sabina_U I am happy to see that people get organized well on the ground. What would be other things you need? Is it fair to characterize the situation as a market failure (on what level(s) are the causes then)?', u'entity_id': 11109, u'annotation_id': 7860, u'tag_id': 959, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14783, u'annotation_id': 12767, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u"1/10 of our participants have a serious problem with housing. Either they're homeless, or they are living in insecure, or temporary accommodation.", u'entity_id': 1710, u'annotation_id': 12763, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u"Hold your horses. As the old man in this corner of the Edgeryders community, I feel it is my duty to say that the vast majority of people lived in rented dwellings up until the 1980s (in most European countries but not in America). The idea of mass ownership of homes was, according to historians, Thatcher's: she wanted more people to be ideologically tied in with the haves, or something to that effect. Apparently, her administration thought\xa0 that a society of home owners would be more invested (literally) in the status quo. They turned out to be mostly right.\n\nAnyway, my point is that before that time people did have families, and they did not feel particularly flaky, quite the contrary. So I would submit that the perceived stability of a familial arrangement has little to do with home ownership. Maybe an important factor is, rather, the rigidity of the agreement that binds it members together: practically indestructible in the case of parent-to-offspring, solid but less committal in\xa0 that of sibling-to-sibling, more instable in that of life partner-to-life partner, and even more in that of the housemate-to-housemate.", u'entity_id': 19317, u'annotation_id': 12764, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Thanks so much for the beautiful description. \xa0This is a conversation we\'ve been recently having at Woodbine. \xa0@yannick i think it is really important how you combine the idea of space with the idea of care. \xa0Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself. \xa0Then with the ever increasing rent, you become more and more attached to "work" or the struggle to compile a bunch of part time jobs together. \xa0Hence the ubiquitious greeting in the city is the "I\'m so busy, just really busy" idea, that once said is usually completely understood to be a chronic state. \xa0But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments. \xa0To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city. \xa0Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other. \xa0In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven\'t felt in the city. \xa0As one of our comrades said, "we left the capital of the world, and in this little town, our world just got so much bigger." \xa0\nExcited to continue this conversation and see the work you all are doing! \xa0Be well.', u'entity_id': 27815, u'annotation_id': 7895, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u"Having met people working in sustainable housing and also at the policy level, there's two steps I found they follow: 1) moving away from cities to be able to run with greener technologies that dont otherwise get approved by authorities\xa0(by green tech\xa0I mean, for instance\xa0insulating with clay mixes, recycled pallettes, wool or cellulose..). 2) building more houses on larger pieces of land and adding an educational center near it to support community development.", u'entity_id': 12304, u'annotation_id': 7894, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 10975, u'annotation_id': 7893, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'But the process for joining involves a lot of face time with community members over a number of visits and meetings. \xa0I assume that when it comes to\xa0a vote \xa0for admitting someone, most everyone considers the whole person and whether or not they will be good cohousing companions.', u'entity_id': 15392, u'annotation_id': 7892, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a "Common House" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It\'s quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That\'s partly due to economic factors.\nIt is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I\'d like to focus just on one of the challenges that I see here: how we engage with our own and each other\'s well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally.\nSharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.\nWe do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?\nThis brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on?\nThese are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other\'s resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.', u'entity_id': 830, u'annotation_id': 7891, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'Loic is trying to give more visibility to housing solutions - it\'s not easy, he says, and it\'s important to make good contact with the owner! "First you squat, then you talk" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail:\xa0loicdesiron@gmail.com', u'entity_id': 791, u'annotation_id': 7890, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u"Previously office building occupied by the French community which had been vacant for 15 years. Groups of squatters moved in and made a deal with the owner to run different workshops - bike fixing, woodwork, IT etc.\nSome interesting facts from his paper:\n-social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands\n-7 % of houses totally empty\n-1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years\nFrom squatting to a participatory process -\xa0 a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.\xa0\xa0In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space!\nIt's an office building, which means people can change the layout easily.\nDifference between buildings for profit and the testcase of 123:\nProfit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised.\nLoic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.\xa0\nImportant detail: Stairs instead of working elevators as a social control mechanism.\nLoic is trying to give more visibility to housing solutions - it's not easy, take good contact with the owner! First you squad, then you talk.", u'entity_id': 541, u'annotation_id': 7889, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people.\nThe first time we visited I was surprised how \u201egood\u201c the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).\xa0\nThe ICC Messe is a former congress centrum which was recently rebuilt\xa0to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling.\xa0Inside of each room there are 4 bunk beds, so in total 8 people per room\xa0(familys are usually separated and live in private rooms, also: the rooms are separated by gender).\nUsually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.\xa0\nFirstly we asked how people organize themselves in the room.\nThe Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying \u201eK\xfchlschrank\u201c. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored\xa0there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official \u201emeals\u201c. They boil the eggs in a water cooker by the way!\xa0\nAnother interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living.\nAlso very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night.\nBerivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light.\nAnother very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night.\nAlso they put pictures from magazines on the wall to make the atmosphere a little more cosy.\nBut still even if they find the possibility to hack something there is a lot of stuff just flying around in the room.\nThere was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore.\xa0What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?", u'entity_id': 681, u'annotation_id': 7888, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 26029, u'annotation_id': 7887, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'From Maison Du People to Huis VDH, a story about citizen centred design.\nSince I was a guide and learned about the architect Horta and his Art Nouveau Style, I\u2019m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks\u2026\nI gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn\u2019t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented.\nSo there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born.\nIt\u2019s all in the name, for Huis VDH it is no other. \u2018Huis\u2019 means \u2018home\u2019 in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: \u201c that the power of a community is bigger than the sum of all parts.\u201d\nOne big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.\nShared knowledge\nOpen Source is all around us, and also in Huis VDH. After living for 5 weeks in an open source innovation camp called POC21, I find solutions to every kind of problem through this model of thinking. Knowledge is there to be shared and if we create the right methodology we will find more easily solutions to any kind of problems. That is why we started mapping out every encounter we had through metamaps, we budget our work with cobudget and use a sharing file system inside the house.\nShowing your vulnerable self\nWhen working in a collective environment, we tend to show our better self, hiding our flaws in the first place. But a strong collective group is as strong as its weakest link, and therefore we find it important that we are open and honest to each other. Having personal problems is something common, but sharing them is less. We try to create a trust field around Huis VDH where personal development is as important as the common goal of the organization. Caring about each other as a human being before seeing it as a resource for a project. In order to bring this theory into practice, we have made the first floor as cosy as possible, so people can just hang around and talk freely to each other. We make meetings short and efficient so there is time to discuss at the bar the more intimate stuff, not with all, but with whom we trust.\nPutting ourselves outside the system\nIn the first six months, I was convinced we could create a complete system without the need of money. Only through exchange we could rebuild the house. This gave us a clear barrier to work around, and even if after six months we partially let money in our system, we were trained to think about solutions without money by using the skills, knowledge and resources of one another. This is one of the many ways we try to build challenges to ourselves to constantly think out of the box. When crisis occurs, we need to think and find solutions fast. Creating these exercises in a calm period will help create resilience in all members.\nModification as constancy\nFinally, another way resilience can be created is by being in a constantly changing environment. Therefore Huis VDH doesn\u2019t have fixed spaces. Every room can be rearranged to have a different use. Having this as one of the ground rules, we create a constant reality of change that makes us well trained in the art of adaptation, a virtue needed in times of crisis. In September, we will be, thanks to @Nadia, hosting the Open Care Weekend for Brussels.We see it as an opportunity to use our space for a common goal and adapt it while having people using the space. It will be our first external happening and we are really excited.\nWhen working for Huis VDH, I have a phrase by Bachelard that always comes to mind: \u201cOur House is our first universe, a real cosmos in every sense of the word\u201d We can\u2019t forget about the complexity of a home when we want to harmonize it. In cosmos, planets collide, new stars are born and a black hole sometimes sucks up even galaxies. This will be the same for people, ideas and principles. The most important for the wellbeing of this microcosm will be the search for constant balance.\nIn September we will be co-hosting the Brussels OPENandChange Workshop and that will kick off our Huis VDH. In the follow up we are working on a concept called Pirate Kitchen: using the resources from dumpster diving or own grown combined with hobby cooks we want to bring each week around 10 people gravitating around the same interest / problem / field but don\u2019t know or rarely meet. We wouldn\u2019t give them any explanation about whom they will meet, only that they will have a dinner with interesting \xa0people. They will have to find out why they are all here, and what they could bring to each other. A sort of blind date for change makers. Could this be an interesting form, or does it already occur in some places?\nI\u2019d appreciate any feedback in a comment below, and see you on 10-11 September for the workshop! \xa0\nThe production of this\xa0article was supported by\xa0Op3n\xa0Fellowships\xa0-\xa0an ongoing program for community contributors\xa0during May - November 2016.', u'entity_id': 520, u'annotation_id': 7886, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'Hello Edgeryders\nFor my fellowship I will write about Huis VDH, which I introduced earlier.\xa0In short:\n\u2018Huis VDH wants to give time and resources to people to experiment, try, fail and succeed around new models for the present and future of Brussels. We are convinced that the magic happens by connecting citizen\u2019s skills and needs. We aim to become a laboratory for urban change hosting citizens in search of anchor.\u2019\nBut Huis VDH doesn\u2019t fall from the sky. For me, being in good care in the city has always meant having a healthy living environment. To create such a good environment we need good city planners and a great vision on public space. Something Brussels is still lacking...\nOnce upon a time, there was public space.\nFrom 2012\xa0onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn\u2019t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop \xa0further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d\u2019Accroche (part of the project V\xe9lo M2, explained here) in that neighbourhood, hoping to bring them some resilience.', u'entity_id': 520, u'annotation_id': 7885, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u"started doing social media work 5 years ago. One of my creations is a facebook group 'House Hunting Galway (for sound people)\u2019, facilitating people to network to find housing and house mates. It\u2019s really important to have a safe space to live with people who suit you. The group grew to 26,000 people and counting. Another facebook group I started is Galway Underground Gigs, which has 6,000 members. I\u2019m always connecting people with the right people, projects and events. Galway is a magic place that draws people here from all over the world, and I get to meet the most inspirational people.", u'entity_id': 808, u'annotation_id': 7884, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority.\nIn care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human "resources" and patients as "consumers" of health care services, squeezing the system to extract wealth.\nThis is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having "owners" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to "delivery of health services", which is quite a different thing.\nA useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn\'t otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure.\nTo put it another way, using financial language, owning land has a different time horizon and a different risk profile\xa0 from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That\'s the theory anyhow.', u'entity_id': 15711, u'annotation_id': 7883, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u"My sister lives in classical Cit\xe9 house\xa0in Ghent. Cit\xe9 houses\xa0are small, cheap houses that were built for\xa0the former poor working classes\xa0back in the day. They are mostly\xa0built in a way that allows more interaction between the inhabitants. There is\xa0a shared open space in the middle, which is free of traffic and is usually filled in with things people chose: tables, barbecues, little gardens, ...\nThe cit\xe9 where my sister lives is very lively. There are\xa0a lot of social interactions because people spend a lot of time outside, organise things together, borrow stuff, etc. Everyone knows everyone.\nThen again, this is a lot less the case in the cit\xe9 right next to my sister's. People don't interact that much and the social ties aren't as rich. I'm not sure what causes this, because the same basic elements are there. Does it come down to the people? What do you think?", u'entity_id': 26044, u'annotation_id': 7882, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'It is very important for social, psycological health to change the environment we are living in. Current living environments are a cause for all kinds of problems. So we want to encourage you to design new community and cooprative spaces for living and working.\nBert', u'entity_id': 20801, u'annotation_id': 7881, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 789, u'annotation_id': 7880, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u"So the lovely\xa0@CommonFutures has just shared this in response to my tweet asking for help:\xa0Intergenerational Housing in Deventer.\nIt's really something:\xa0a project started in 2013 for a new elderly\xa0retirement\xa0home where students pushed back by unaffordable student housing can also live\xa0without paying rent,\xa0and in exchange volunteering 30 hrs of social activities per month.", u'entity_id': 15200, u'annotation_id': 7879, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'In 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty\xa0Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue.', u'entity_id': 804, u'annotation_id': 7878, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 19442, u'annotation_id': 7877, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 17309, u'annotation_id': 7876, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14850, u'annotation_id': 7875, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Simone, here on Edgeryders, is the chairperson of the first really successful co-housing scheme in Italy. This is his story: I suggest you get in touch, I know hime personally and he is a very nice, helpful personal.', u'entity_id': 13216, u'annotation_id': 7874, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 13152, u'annotation_id': 7873, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27791, u'annotation_id': 7872, u'tag_id': 962, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 7871, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'the little gimmicks to improve the bare rooms where they are living in at the moment: How they pulled out screws and nails from the walls to make clothing hooks; how you make a wall-mounted phone holder with just duct tape and a piece of wood; where to store the food; they showed us how they hack the beds to create more privacy and how to shield the light falling onto the upper beds with merely pieces of wood and a blanket to a point where one could create an entire ceiling with just white cloth.\nWe learnt quickly that the ideas of how to use the space could never occur to someone who has ne', u'entity_id': 703, u'annotation_id': 7870, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 7869, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 7868, u'tag_id': 962, u'entity_type': u'post'}, {u'quote': u'In our previous post, we concluded that nobody had really ideated SoundSight all alone\u2026 no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models.\nAt this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product.\nThe first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them.\nThe team worked hectically on Irene\u2019s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.\n\xa0\nLet\u2019s leave it again to Irene\u2019s recollection:\nIrene: \u201cHello Mario[1], we are here again\u2026 this time I promise you will be impressed\u201d\nMario: \u201cHi Irene, it\u2019s a pleasure\u2026 and rest assured, last time I was already impressed, although maybe not as you hoped for\u2026 with my friends we have been laughing a lot about your engineer\u2019s idea of a prototype!\u201d\nIrene: \u201cOh no, Mario\u2026 don\u2019t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things\u201d\nMario: \u201cDon\u2019t worry Irene, I have only told the story to one or two\u2026 hundreds of people\u2026 ahahah!\u201d\nIrene: \u201cDoh! \u2026ok Mario, then to pay you back, today\u2019s text will be extra tough!\u201d\nMario: \u201cI am ready for the challenge!\u201d\n\xa0\nIrene sets up the simulation\n\xa0\nIrene: \u201cOK Mario, it\u2019s ready. I would like to ask you to try the first round without me sharing with you any information\u2026 I want you to focus on your impressions only, tell me how it feels\u201d\nMario: \u201clet\u2019s start\u201d\n\xa0\nThe simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click\n\xa0\nMario: \u201cIndeed there have been a lot of improvements, it is smooth now\u2026 last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click\u2026 are you sure these are simulations?\u201d\nIrene: \u201cYes Mario\u2026 we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks\u2026 we are just not there yet\u2026 you are one of our very early testers, and I cannot thank you enough for that\u201d\nMario: \u201cDon\u2019t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user\u2019s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments\u2026 but I haven\u2019t been able to identify where I was.\u201d\nIrene: \u201cThat\u2019s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them\u2026 you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?\u201d\nMario: \u201cIt\u2019s difficult to tell you more from just this\u2026 maybe we can move to the next exercise?\u201d\nIrene: \u201cYes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks\u2026 try to guess what it would be\u201d\nJust a quick run of the new scenario on the simulator\nMario: \u201chmmm\u2026 the smoothness has improved a lot\u2026 but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?\u201d\nIrene: \u201cI had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral\u2026 now that I have told you, could you confirm it or would you still be doubtful?\u201d\nMario: \u201cLet me try to listen again\u201d\n\xa0\n\u2026the simulator runs again shortly\nMario: \u201cYes Irene, now that I know, it could well be\u2026 I had some doubts, with no context it could have been a theater or a large gym, \u2026\u201d\nIrene: \u201cIndeed\u2026 now I would like you to do a few exercises\u2026 I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features\u2026 later there will be a test\u2026\u201d\nMario: \u201cFor me or for the software?\u201d\nIrene: \u201cFor both, Mario, don\u2019t try to escape your responsibilities\u201d\nMario: \u201cAhahah\u201d\n\xa0\nThey run the training set\nMario: \u201cWell Irene, we will see how I perform later\u2026 but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users\u2026 it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn\u2019t add up\u201d\nIrene: \u201cYou are right. Together with the real-time acquisition of users\u2019 clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface\u2026 or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough\u201d\nMario: \u201cYou would need a lot of needles to offer a useful interface\u2026 you can try prototyping something quick maybe with Arduino\u2026 but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.\u201d\nIrene: \u201cWe will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional\u2026 and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break\u2026\u201d\nMario: \u201cWhat break? Are you not letting me off yet?\u201d\nIrene: \u201cMario, let\u2019s just take the test before the coffee\u2026 I will let you off then, for today\u201d\nMario: \u201cOk, ok\u2026 a no is not possible anyway, isn\u2019t it?\u201d\nIrene: \u201cIt\u2019s always possible, but I will insist with a smile\u201d\nThey run the tests\nIrene: \u201dif we compare today\u2019s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!\u201d\nMario: \u201cBut Irene, how can I be sure if I have truly learned? I mean\u2026 we should arrange tests where there are coupled with some sort of benchmark\u2026 maybe similar tests in real world, you could imagine a mobile lab to do so\u2026 or even just arrange competitions among users\u201d\nIrene: \u201cThat\u2019s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being\u2026 do you think your partner would like to try it out against you?\u201d\nMario: \u201cBut she sees\u2026\u201d\nIrene: \u201cit should not be an advantage, and I promise you I will not show her the screen\u201d\nThis is now a different story\u2026 but after being initially baffled, Mario\u2019s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill.\n1\xa0Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture\u2026', u'entity_id': 578, u'annotation_id': 7914, u'tag_id': 968, u'entity_type': u'post'}, {u'quote': u'There is always a\xa0series of encounters and discussions that help pave the path that\xa0led to idea creation. During these conversations, it;s the human "Why"- not the scientific "Why".It\'s in those personal interactions that give a voice to humanistic problems. \xa0@Noemi @Nadia', u'entity_id': 7329, u'annotation_id': 7913, u'tag_id': 968, u'entity_type': u'comment'}, {u'quote': u'Sara: "Spending time with a community, or patients that will benefit from what you\u2019re creating is looking at the problem in a human-centered way and it highlight\u2019s what\u2019s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we\u2019re back to the drawing board. We need to know what from the user\'s perspective so we can design with them in mind."', u'entity_id': 861, u'annotation_id': 7912, u'tag_id': 968, u'entity_type': u'post'}, {u'quote': u"Hi @Gehan, it's a pleasure to meet you. You're welcome, these conversations are crucial and must be shared.\nFor starters, reframing the problem in human-centric ways,\xa0technological solutions and its designers could develop\xa0a deeper understanding of the user's lives and their unmet needs. This will\xa0bridge the gap between product (solution) and the user population who would most benefit.\xa0Developing supporting systems that recognize the unique challenges of each patient, that means taking it to the community, and having them create the impact and play a major role.\nFYI part 2 of this conversation forthcoming", u'entity_id': 15427, u'annotation_id': 7911, u'tag_id': 968, u'entity_type': u'comment'}, {u'quote': u"people. There's something very meaningful in your description of the mother's response to technological solutions. Did\xa0the insight\xa0about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might\xa0design technological responses that generate more human connection rather than displace it?", u'entity_id': 8467, u'annotation_id': 7910, u'tag_id': 968, u'entity_type': u'comment'}, {u'quote': u'Our approach has its roots in service and human-centered design. A lot of people are using these ideas now. Seven years ago, when we started, they were not so well known. We have a whole team of designers, including regional designers who use a participatory, ethnographic, HCD approach. They do in-depth site visits and investigate the context in which the apps will be used, and use a variety of techniques to do so: system mapping, role playing, in-depth interviewing. Some questions they might ask: \u201cWhat is the current workflow? Ideal workflow?\u201d, \u201cWhat is the day-to-day like for end users?\u201d It\u2019s an intensive and essential process.', u'entity_id': 564, u'annotation_id': 7909, u'tag_id': 968, u'entity_type': u'post'}, {u'quote': u"NO I think we realy tried to be MORE HUMANS...at least that's what I felt in this event... people conscious of their potential and influences wanting to connect their powers to create utopians projects, connecting knowledge and technologies, building islands of resistance...yes join the resistance, against bigotery, rascism, all sort of fascism (facebook?), neo liberalism, lets build more communities online, offline, dive with us and come play/party, your bizness plan is your community, from now on that's all that matter", u'entity_id': 38808, u'annotation_id': 11762, u'tag_id': 963, u'entity_type': u'post'}, {u'quote': u'Thank you @Gehan for this stimulating reflection, and for the mentions. I identify with the great challenge of knowing how to orient ourselves and act in the larger picture, beyond what we are already doing in our own smaller contexts. But even just describing the threads helps us to recognise our belonging to the same fabric, and to weave more connections over time.', u'entity_id': 10437, u'annotation_id': 7902, u'tag_id': 963, u'entity_type': u'comment'}, {u'quote': u"The fourth category\xa0connects with what Dougie Strang of Dark Mountain referred to during our chat as \u2018deep encounters\u2019 and this is something that I'm keen to\xa0explore further. How do we facilitate these kind of experiences?\xa0Might this be one mode of Simon's 'enculturation'?\xa0\xa0(This might be worth a separate blog post...)", u'entity_id': 6462, u'annotation_id': 7901, u'tag_id': 963, u'entity_type': u'post'}, {u'quote': u"It's important what you say about how we can become precious about the problem and lose sight of the people. There's something very meaningful in your description of the mother's response to technological solutions. Did\xa0the insight\xa0about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I'm curious to learn more. Have you considered how we might\xa0design technological responses that generate more human connection rather than displace it?", u'entity_id': 8467, u'annotation_id': 7900, u'tag_id': 963, u'entity_type': u'comment'}, {u'quote': u'3) A story that binds us together - understanding how our different activities are related', u'entity_id': 788, u'annotation_id': 7899, u'tag_id': 963, u'entity_type': u'post'}, {u'quote': u'So, to make strangers connect, a sensible strategy seems to be to "think like a hacker" and\xa0exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem\xa0to be hardwired for forming groups. It is very, very easy to make humans behave like a group \u2013 check out Wilfred Bion\'s work for that', u'entity_id': 19934, u'annotation_id': 7898, u'tag_id': 963, u'entity_type': u'comment'}, {u'quote': u"Back in the hippie glory days some of the more spiritually-inclined ones of us routinely engaged in this sort of mini-meditation with another person. It wasn't structured; we would just do it when we felt like it.\xa0 It often led to better mutual understanding and empathy, which was usually discerned in whatever conversation followed the session.", u'entity_id': 17086, u'annotation_id': 7897, u'tag_id': 963, u'entity_type': u'comment'}, {u'quote': u'A very basic event which happened in a lot of cities over the last years, including\xa0where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one\xa0would\xa0stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in.\nMore about this and a video:\xa0https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/', u'entity_id': 14948, u'annotation_id': 7896, u'tag_id': 963, u'entity_type': u'comment'}, {u'quote': u'"A human project, rather than a corporate one." Herein might lie one of they keys to open care. @Ezio_Manzini might have something to say here...', u'entity_id': 33810, u'annotation_id': 12769, u'tag_id': 2088, u'entity_type': u'comment'}, {u'quote': u", and I agree with your observations. Education is above all a human relationship, in fact a proxy of parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there's one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important,\xa0from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.", u'entity_id': 22212, u'annotation_id': 7903, u'tag_id': 965, u'entity_type': u'comment'}, {u'quote': u'human resources', u'entity_id': 6272, u'annotation_id': 12503, u'tag_id': 2620, u'entity_type': u'post'}, {u'quote': u'human rights', u'entity_id': 39328, u'annotation_id': 11667, u'tag_id': 966, u'entity_type': u'post'}, {u'quote': u'Women \xa0demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed\u2026 crippled', u'entity_id': 858, u'annotation_id': 7907, u'tag_id': 966, u'entity_type': u'post'}, {u'quote': u'The respect for the human person, the system of rights and duties, which I respected from the first day. But living in the middle east gives you the chance to see the dark face of that world, the military training field I came from taught me to not believe the existing models, the part of relations of states specifically.', u'entity_id': 797, u'annotation_id': 7906, u'tag_id': 966, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 12845, u'annotation_id': 7905, u'tag_id': 966, u'entity_type': u'comment'}, {u'quote': u"Interesting article of yours, just read it. Thanks for writing it! So, to be a bit heretical, one could say: Political rights are overrated. The only time you need them is if you need political change because of the current government being incompetent or corrupt. And given that the next government in Europe is usually just as incompetent and corrupt as the last one, they are of little use then either. The human rights record of democratic European governments with respect to creating a humanitarian crisis in Greece is also not that good In fact I'd like to see some statistics about what caused real betterment in democracies: Election-induced changes, or extra-constitutional changes?", u'entity_id': 18061, u'annotation_id': 7904, u'tag_id': 966, u'entity_type': u'comment'}, {u'quote': u'True disruption, then, might not look like the world-spanning, high-octane revolutions beloved of the senior executives. It might look like slowness; like quietness; like a return to engagement at the scale of the human being. It might just turn out that old is the new new.', u'entity_id': 549, u'annotation_id': 7915, u'tag_id': 969, u'entity_type': u'post'}, {u'quote': u"Great sharing, JUS team and @Omri_Kaufmann in particular!\xa0\n\nI am out of my depth: I have been sad but never depressed, exhausted but never burnt out. I have emotions, but they never seem to become medical conditions\xa0somehow. Lucky me.\xa0\n\nBut many people seem to think it's the human touch that makes the difference in care. Even the best designed sofa will not make you any less lonely.\xa0\n\nThe point is made (towards 12.00) by @Yara_Al_Adib in this video, since you want to be inspired you will probably like it!", u'entity_id': 20198, u'annotation_id': 12771, u'tag_id': 967, u'entity_type': u'comment'}, {u'quote': u'Also we talked about how social relations to certain people are necessary for providing some kinds of care. And how to solve challenges of providing care for people we don\u2019t already know. You touch people physically (as we did in the opening session today) and it changes relationship immediately e.g. free hugs in public spaces: This changes something very fast. Especially in regards to refugee topic\u2026.Before helping there should be a contact, a communication with people before offering help whether you know they need or not.\u201d', u'entity_id': 494, u'annotation_id': 7908, u'tag_id': 967, u'entity_type': u'post'}, {u'quote': u"I clicked on the Theater of the Oppressed link and saw the point about cultural humility!\n@Shajara \xa0Now that is a really a good idea!! \xa0\nDid you know 'modesty' is the 5th principal in the diybio code of ethics, btw?\nI am also interested in open poetry, spoken word, and think most problems can be solved if good communication is possible!", u'entity_id': 33812, u'annotation_id': 7916, u'tag_id': 970, u'entity_type': u'comment'}, {u'quote': u'N: How would you design for maximum inappropriateness. What are the most inappropriate jokes you can make in a situation where someone is in pain? How do you piss people off at a Jewish funeral? How to make the grieving person forget about their sorrow and want to kill you instead?', u'entity_id': 5658, u'annotation_id': 7917, u'tag_id': 971, u'entity_type': u'post'}, {u'quote': u"I & a friend have put some thought into care & self driving cars here (creative commons): https://cocreate.localmotors.com/RaMansell/healthy-movement/\nI also have a couple of ideas regarding hygiene (shower mods), and had worked on a prototype of for electrical stimulation of muscle cells grown in a dish.\nI'd love to discuss those things with someone who has a little more care background than I do (materials science).", u'entity_id': 9902, u'annotation_id': 7924, u'tag_id': 974, u'entity_type': u'comment'}, {u'quote': u"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices \xa0and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing \xa0plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that \xa0expose girls and women to violence \xa0and \xa0HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com\nI will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.", u'entity_id': 24949, u'annotation_id': 7923, u'tag_id': 974, u'entity_type': u'comment'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 7922, u'tag_id': 974, u'entity_type': u'post'}, {u'quote': u'Trainings: Street Nurses organizes different types of awareness-raising sessions and training courses in French or Dutch on \u2018hygiene and precariousness\u2019 and \u2018basic first aid\u2019.\xa0 These trainings are address to any target group that is likely to come into direct contact with homeless people or that works with people who live at home and have major hygiene issues. Our nurses organize sessions on site \u2013 in schools, in the offices of security guards and social workers, clinics etc.', u'entity_id': 767, u'annotation_id': 7921, u'tag_id': 974, u'entity_type': u'post'}, {u'quote': u'I also have ideas regarding more efficient or senior friendly showering (hygiene) methods, mostly foam based.\nRecently I brainstormed for a self driving car mod (https://cocreate.localmotors.com/RaMansell/healthy-movement/) that could work in rehab as well, so some ideas are still warm. I had actually proposed to make it incontinence friendly as well.', u'entity_id': 20346, u'annotation_id': 7920, u'tag_id': 974, u'entity_type': u'comment'}, {u'quote': u'First of all, a kind of participatory assessment, based on a broad and heterogeneous participation was appreciated also by @alessandro_contini -the designer in charge of the user research meant for shop owners only that will follow this event. What emerged are unexpected cases in-between and common and shared interests among stakeholders. The social dimension emerged as a shared need to construct a substantial and workable objectivity, by a keen and multidimensional analysis of the formal objectivity embedded in the procedure and the script articulated in the fields of the form. What citizens could make visible where aspects of the dimensions for access that usually remain invisible when filling a form or being counseled by a technical advisor.', u'entity_id': 850, u'annotation_id': 12772, u'tag_id': 2090, u'entity_type': u'post'}, {u'quote': u'There is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings.', u'entity_id': 33749, u'annotation_id': 7930, u'tag_id': 2090, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7855, u'annotation_id': 7929, u'tag_id': 2090, u'entity_type': u'comment'}, {u'quote': u"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can\xa0choose to 'bind' their room to a specific cause, donating most of the returns\xa0to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?", u'entity_id': 23131, u'annotation_id': 7928, u'tag_id': 2090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29967, u'annotation_id': 7927, u'tag_id': 2090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30614, u'annotation_id': 7926, u'tag_id': 2090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 31152, u'annotation_id': 7925, u'tag_id': 2090, u'entity_type': u'comment'}, {u'quote': u'FACT 2: Bovisa is undefined.\nIn the past, it was an industrial powerhouse. Today it\u2019s something different, difficult to define.\nIt lacks the identity that other areas have successfully established,\xa0\nwhich also reflects on the feelings that people share towards their place.\nFor that reason, we believe that Bovisa needs to state new, authentic values\xa0\nto make its way to the minds and hearts of people.\nThat\u2019s why we asked ourselves:\nHow may we shape a relevant and unifying image for this area?', u'entity_id': 26067, u'annotation_id': 7932, u'tag_id': 976, u'entity_type': u'comment'}, {u'quote': u'do we meet the \u2018clients\u2019 needs?', u'entity_id': 516, u'annotation_id': 7934, u'tag_id': 977, u'entity_type': u'post'}, {u'quote': u"What would I need if I were there? What should I carry to help my children withstand it? What should I bring with me for a little break? ...and their feet! What will happen to their feet? And the sun? It's hard being a parent in peace. In war and in refuge, only a hero.", u'entity_id': 550, u'annotation_id': 7933, u'tag_id': 977, u'entity_type': u'post'}, {u'quote': u"Anyway I was reminded of the Museum of the Future that another connection who's expertise lies in scenario planning around the future of health...\xa0\xa0he's\xa0used MoF\xa0in helping people to imagine the future - I think he did this with young people for a project we were involved in a few years ago. I wondered whether that might make for an interesting session that gets away from simple 'downloading' good info and purely presentation based formats? I'm due to meet up with him soon - I'll ask him what would be involved...", u'entity_id': 23963, u'annotation_id': 7936, u'tag_id': 978, u'entity_type': u'comment'}, {u'quote': u'Pieter: \u201cWe started engaging people with the question \u201cWhat if?\u201d; mapping the ideas and also the interests of people. \u201cHow do I look at my neighborhood?\u201d from the perspective of social security, traffic, safety, more green in the streets,... For each remark we mobilize our network and creativity to support initiators from each street to find solutions. After that process is done, the people come up with a vision for their living street, that will be implemented in practice. Evaluation is an ongoing process, so things can be changed during it.\u201d', u'entity_id': 33746, u'annotation_id': 7935, u'tag_id': 978, u'entity_type': u'post'}, {u'quote': u'Continuous mapping and connection of different private, public and third sector actors efforts into coherent shared plans that take into consideration the budgetary, logistical and political constraints within which each group is working. I can tell you from experience that is it not easy. The reason being that the incentives are aligned against it. We all agree that at the system level good documentation saves everyone time and resources. At the individual level it is more difficult to motivate the additional investment of time and effort. Where you see people doing this consistently is where it is a part of a shared culture and work ethos. To get this going you have to create the incentives for people to do additional work involved, instill the ethos, teach people the workflow and enforce it top down. Over and over. Until there is a critical mass doing it and others can share the effort of spreading and maintaining the enabling culture.', u'entity_id': 5234, u'annotation_id': 7938, u'tag_id': 979, u'entity_type': u'post'}, {u'quote': u'how they expect to go from intention to implementation.', u'entity_id': 5234, u'annotation_id': 7937, u'tag_id': 979, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 775, u'annotation_id': 7948, u'tag_id': 981, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 653, u'annotation_id': 7947, u'tag_id': 981, u'entity_type': u'post'}, {u'quote': u'In Thessaloniki and more generally in Greece, there is currently a rise of the cooperative movement, especially as a result of the effects of the ongoing economic crisis, but unfortunately these new initiatives are up to now largely disconnected from each other. To create links between them, means to expand the spaces where solidarity is being practiced, in other words to fill the gaps with ever-increasing solidarity!\nMy role in this project as an activist is to work closely with the group of refugees and locals to support the building of the project which requires a lot of work on communication and cooperation, in order to continue and expand successfully. As an independent researcher, I have presented the results of this ongoing project at a conference in Lesvos and hope to continue documenting its progress as well as to explore other similar initiatives in Greece.', u'entity_id': 792, u'annotation_id': 7946, u'tag_id': 981, u'entity_type': u'post'}, {u'quote': u'"Communication with the population in Germany is currently not part of emergency response exercises. In the competent authorities, there are in most cases no crisis communication concepts. Communication on social media has so far only been inadequately addressed." (this comes from the radiation guys who are somewhat important historically).\nAlso they see the need to coordinate better within the EU as quite simple events (big fire, toxic chemicals released) can overwhelm national stockpiles easily - especially if there were a series of such events. So if the event you plan could include this as a facet, then I think this could be potentially be budgeted. Also, here is a German centered (intl at bottom) list of emergency reaction organizations (mostly centered around "Civil Protection") and some other relevant organizations. If your event allows for it, I could try and see if there are a few that would be interested in dialing in and listening to how your discussion is going. Perhaps they could also answer some questions that may come up.', u'entity_id': 13499, u'annotation_id': 7945, u'tag_id': 981, u'entity_type': u'comment'}, {u'quote': u"I would not want to dismiss methods from the past completely. Certainly many of them don't work very well, may be blindsided, or out of touch with realities. So I agree one should not accept them as last word on the issues (and note I may sound more drastic on this if I had seen official approach fail on the Greek Islands for months) - there sure is a necessity for trying out new things. Still official policies often have some useful elements to them (also depends on how far into the past one wants to look).", u'entity_id': 13506, u'annotation_id': 7955, u'tag_id': 982, u'entity_type': u'comment'}, {u'quote': u'Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.', u'entity_id': 7673, u'annotation_id': 7951, u'tag_id': 982, u'entity_type': u'comment'}, {u'quote': u"'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?", u'entity_id': 10261, u'annotation_id': 7949, u'tag_id': 982, u'entity_type': u'comment'}, {u'quote': u"To your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?", u'entity_id': 15649, u'annotation_id': 7959, u'tag_id': 983, u'entity_type': u'comment'}, {u'quote': u'It\u2019s also notable that many conferences, workshops or unofficial brainstorming meetings took place and new technology-oriented groups were created.\xa0 New ideas and solutions were proposed and innovative applications were developed from people all over the world. However, most of those didn\u2019t fall on fertile ground for wide use, thus must be investigated thoroughly in the future.', u'entity_id': 550, u'annotation_id': 7958, u'tag_id': 983, u'entity_type': u'post'}, {u'quote': u'On the other hand, citizens reacted vigorously and passionately despite the fact that they didn\u2019t mobilize immediately.', u'entity_id': 550, u'annotation_id': 7957, u'tag_id': 983, u'entity_type': u'post'}, {u'quote': u'What is required is a way of feeding the experiences and innovation prototyped by the improvised,\xa0citizen-led organisation\xa0into the institutional learning of\xa0NGOs', u'entity_id': 19227, u'annotation_id': 7956, u'tag_id': 983, u'entity_type': u'comment'}, {u'quote': u'The idea is to maximize the intrinsic and extrinsic motivation for users and let everybody be connected with the goal of the platform, in particular, projects will allow the organization to grow, scale and create a widespread mass of users.\nBonding our initiative to hundreds of others will create that crowd-powered process that is needed to achieve the critical mass without relying on VC money.', u'entity_id': 20627, u'annotation_id': 7961, u'tag_id': 984, u'entity_type': u'comment'}, {u'quote': u'o get this going you have to create the incentives for people to do additional work involved, instill the ethos, teach people the workflow and enforce it top down. Over and over. Until there is a critical mass doing it and others can share the effort of spreading and maintaining the enabling culture.', u'entity_id': 5234, u'annotation_id': 7960, u'tag_id': 984, u'entity_type': u'post'}, {u'quote': u"Giving other perspectives of care makes us think about our own caretaking\xa0structure\n\nFinally we had one person that helped think out of the box in a really disruptive way. He was a Syrian refugee that had to postpone his medical studies/Ph.D.\xa0 To flee the country and gave us a lot of material to think about. He saw us as 'boxpeople', living in a bubble and putting others in bubbles. Elderly, homeless people, psychological ill are all given a space outside society. They maybe didn't have the most efficient healthcare system, but he explained it was much more humane. It made us think a lot about how we see care in the west. He was also the person that pointed out the problem of trust we create in the west.", u'entity_id': 541, u'annotation_id': 12775, u'tag_id': 2093, u'entity_type': u'post'}, {u'quote': u'Years ago, I was living in Milan.\xa0I got frustrated because, though people from every corner of the world lived in the city side by side with me, almost all of my friends were white Italians like myself. WTF?', u'entity_id': 14055, u'annotation_id': 7970, u'tag_id': 2093, u'entity_type': u'comment'}, {u'quote': u'Actually "newcomers" is the most generic, broad enough and also non-offensive term we came up with for this OpenCare challenge. It turns out that most of us have fit that category at some time in our lives.\xa0I only wanted to point out that projects looking at integration of sorts might need to acknowledge that those who are perceived as newcomers\xa0can already have strong cultural claims to a space because they are already shaping it\xa0e.g. working\xa0migrants, or foreign\xa0students settling to a space.', u'entity_id': 13009, u'annotation_id': 7969, u'tag_id': 2093, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 12739, u'annotation_id': 7968, u'tag_id': 2093, u'entity_type': u'comment'}, {u'quote': u'If "newcomers" (generic term because newcomers might have been around for some time now!)\xa0were actually part of the design and the project team they\'d have new insights into how more diverse communities can be engaged. This is exactly what we\'re looking at with OpenCare - novel ways of improving\xa0promising projects out there, even if these new ways are\xa0just insights or if it means borrowing ideas from different projects faring better already.', u'entity_id': 12157, u'annotation_id': 7967, u'tag_id': 2093, u'entity_type': u'comment'}, {u'quote': u'Part of what builds trust is if people can recognise their own perspective, language and experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: \u201cDo not put a cap on my dreams, just give', u'entity_id': 5234, u'annotation_id': 7966, u'tag_id': 2093, u'entity_type': u'post'}, {u'quote': u"1. At LOTE5 we are organising this reflexive design exercise on Collaborative inclusion: how migrants-residents collaboration can produce social values. The event is run by Ezio Manzini, one the world's leading designers for social innovation. You can partner with us\xa0if you want to help make it into a workshop on addressing specific problems tied to reception and inclusion of asylum seekers. Or just sign up and participate.", u'entity_id': 5234, u'annotation_id': 7965, u'tag_id': 2093, u'entity_type': u'post'}, {u'quote': u'Caring with science\nMore fundamentally, care is everyone\u2019s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible\u2019s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it\u2019s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there\u2019s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it\u2019s communicated.\nThis is only one of plenty of groups that don\u2019t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover.\nBeyond the tools', u'entity_id': 530, u'annotation_id': 7973, u'tag_id': 986, u'entity_type': u'post'}, {u'quote': u'The idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about "healthcare", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable "umwelt" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.', u'entity_id': 686, u'annotation_id': 7972, u'tag_id': 986, u'entity_type': u'post'}, {u'quote': u'So bringing "real\' work in the center of the operations\xa0by giving back the floor to those who act is a way that is currently implemented in a few organizations to significantly reduce the risk of burn out. By organizations, I mean not-for-profit, for-profit or public organizations. None of them is immune to this illness...especially the not-for-profit ones like NGOs.', u'entity_id': 15056, u'annotation_id': 7971, u'tag_id': 986, u'entity_type': u'comment'}, {u'quote': u"\u201cDon\u2019t assume a person with a disability is easily offended.\u201d\n\n\xa0\xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \u2014\u201cDisability Etiquette\u201d from Wikipedia.\xa0\n\nAt the beginning of the research, we asked ourselves, \u201cWhat is disability?\u201dAccording to Cerebral Palsy: A Guide for Care by Bachrach Miller, the terms regarding disability are defined as such:\n\n\u201cImpairment is the correct term to use to define a deviation from normal, such as not being able to make a muscle move\u2026Disability is the term used to define a restriction in the ability to perform a normal activity of daily living which someone of the same age is able to perform. \u2026 Handicap is the term used to describe a child or adult who, because of the disability, is unable to achieve the normal role in society commensurate with his age and socio-cultural milieu\u2026All disabled people are impaired, and all handicapped people are disabled, but a person can be impaired and not necessarily be disabled, and a person can be disabled without being handicapped.\u201d[1]\n\nNowadays, more and more people begin to pay attention to how to address people with disabilities. The use of \u201cpeople-first language\u201d* in English aims to \u201cavoid the subconscious dehumanization when discussing people with disabilities\u201d[2]. However, as the researches continue and after we interviewed a few people with disabilities, we soon realized that language is not really a problem. Every person we interviewed all said that the word \u201cdisability\u201d doesn\u2019t bother them at all and they don\u2019t mind being called \u201cdisabled\u201d because it is a fact. (Interview with Raul Krauthausen by @Moriel).\n\nSo here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies?\n\nAnother example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don\u2019t think otherwise to begin with.\n\nCould it be that some of us\u2014people without physical disabilities\u2014think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people\u2019s opinion.\xa0\n\nFor example: use \u201ca person with a vision impairment\u201d instead of \u201ca blind person\u201d\n\n1.http://gait.aidi.udel.edu/gaitlab/cpGuide.html\n\n2.https://en.wikipedia.org/wiki/People-first_language\n\nThis is a group project on going #able with @Moriel, @ChristineOehme and @Luise Kr\xf6ning", u'entity_id': 694, u'annotation_id': 12776, u'tag_id': 2094, u'entity_type': u'post'}, {u'quote': u'Have you, by any chance, read this\xa0https://aeon.co/ideas/descartes-was-wrong-a-person-is-a-person-through-other-persons or anything along the line, recently? There is a renewed interest in the role of social inclusion (or lack thereof) as the root rather than the consequence of mental health\xa0challenges... And I very much like that you suggest to connect the topic to reflections about the hyped citizenship income, and the nature of work. How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?', u'entity_id': 26676, u'annotation_id': 7984, u'tag_id': 2094, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 838, u'annotation_id': 7983, u'tag_id': 2094, u'entity_type': u'post'}, {u'quote': u"I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts.", u'entity_id': 716, u'annotation_id': 7982, u'tag_id': 2094, u'entity_type': u'post'}, {u'quote': u'Projects to make the sports clubs more inclusive because they were closed for refugees; also hardly accessible by children with special needs. So with other people they pushed for inclusivity and speaking to the Belgium Football Union, but also preparing a strategy for the next few years.', u'entity_id': 541, u'annotation_id': 7981, u'tag_id': 2094, u'entity_type': u'post'}, {u'quote': u"How can we build research into practice or at least make options much more accessible?\nThe question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community\nEven handbikes which are more popular can\u2019t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients.", u'entity_id': 759, u'annotation_id': 7980, u'tag_id': 2094, u'entity_type': u'post'}, {u'quote': u", only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?", u'entity_id': 19778, u'annotation_id': 7979, u'tag_id': 2094, u'entity_type': u'comment'}, {u'quote': u'experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: \u201cDo not put a cap on my dreams, just give me access to the tools and see what I can build with them\u201d.\u200b', u'entity_id': 5234, u'annotation_id': 7978, u'tag_id': 2094, u'entity_type': u'post'}, {u'quote': u'Solutions not marketed is\xa0a complex one. As graduate student I believed (was taught) that if it works it will be sold. That\u2019s not the way of business. Healthcare is business. Hard cold \xa0business. A businees where 90%\xa0 of the healthcare budget is spend on a solution that does not work. 90% (EU data) is spend on treating cronic diseases. Why are they cronic? Because the cure we are paying is not working... ok I\u2019m being cheeky here', u'entity_id': 33426, u'annotation_id': 7987, u'tag_id': 988, u'entity_type': u'comment'}, {u'quote': u"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results:\xa0common decency is no longer enough and one has to have grit. In other words, I feel\xa0more and more that any ambitious effort to lead to\xa0greater equality, access, fairness in the world needs to become somewhat\xa0political and build consistent support behind them.\xa0\nExample: look at Academia as a space for sharing expertise and see whether it is going in the right direction paywalling everything and being very slow to reform in terms of open access policies. What you have is a set of no-way-out reactions,\xa0people like A. Swartz or this lady in Kazakhstan\xa0taking action in their own hands. I would not favor those of course, but middle ways are long term battles with a lot of coordination across the net. Repeat, repeat, repeat..", u'entity_id': 6933, u'annotation_id': 7986, u'tag_id': 988, u'entity_type': u'comment'}, {u'quote': u'So a relatively simple method of restoring the hand function in people having broken their neck (cervical spinal cord injury), that has been demonstrated useful in a large clinical trial has not become available to people who really need it because it does not fit the \u2018business model\u2019 \xa0of modern health care systems !?', u'entity_id': 516, u'annotation_id': 7985, u'tag_id': 988, u'entity_type': u'post'}, {u'quote': u"In the USA, the fabled land of plenty where you are free to succeed and also free to fail, statistics show that the average life savings of my generation are barely enough to sustain them (us) for a year in anything like the standard of living now enjoyed. \xa0And that stadard is lower already than our parents' WWII generation that was both smaller and wealthier, with a vastly larger middle class. \xa0Then\xa0what will become of everyone? American Social Security is robust now but without a lot more\xa0care and feeding from a unified nation,\xa0it won't stay that way. \xa0And the cost of urban living is going up fast all over America. \xa0Sending seniors out to the country where the health care is worse and one has to drive everywhere isn't an answer.\xa0At least seniors in the USA have Medicare, but that alone won't cover the total cost of health care.", u'entity_id': 23372, u'annotation_id': 7988, u'tag_id': 989, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 7989, u'tag_id': 990, u'entity_type': u'post'}, {u'quote': u"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post \u2013 seems like great work, congrats!\n\nThe idea of understanding one's\xa0own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes\xa0out), or a many-to-many interaction between users. Can user A see the diary of user B? Do\xa0they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?", u'entity_id': 8578, u'annotation_id': 12854, u'tag_id': 2096, u'entity_type': u'comment'}, {u'quote': u'And for us here at Woodbine, the loss of a dear friend and comrade who was traveling to support the indigenous resistance at Standing Rock.', u'entity_id': 6376, u'annotation_id': 7992, u'tag_id': 992, u'entity_type': u'post'}, {u'quote': u'I\'ve cut and paste the text below\xa0from the web - just wondered if anyone had existing links as it sounds as though there\'s potential connections for OpenCare in general?\n"Southcentral Foundation is a non-profit health care organisation serving a population of around 60,000 Alaska Native and American Indian people in Southcentral Alaska, supporting the community through what is known as the Nuka System of Care (Nuka being an Alaska Native word meaning strong, giant structures and living things).\nNuka was developed in the late 1990s\xa0after legislation allowed Alaska Native people to take greater control over their health services, transforming the community\u2019s role from \u2018recipients of services\u2019 to \u2018owners\u2019 of their health system, and giving them a role in designing and implementing services. Nuka is therefore built on partnership between Southcentral Foundation and the Alaska Native community, with the mission of \u2018working together to achieve wellness through health and related services\u2019. Southcentral Foundation provides the majority of the population\u2019s health services on a prepaid basis."', u'entity_id': 6441, u'annotation_id': 7991, u'tag_id': 992, u'entity_type': u'post'}, {u'quote': u'Read what other Edgeryders are saying -\xa0Andrei\u2019s At the edges of conflict and mixed identity\xa0makes a strong point on what it\u2019s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: "hate speech on both sides [of Transnistria] is still louder than the voices of peace"\n\nGood for you:\xa0If you\u2019re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you\u2019re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother. \xa0\n\nGood for everyone:\xa0Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.', u'entity_id': 867, u'annotation_id': 7990, u'tag_id': 992, u'entity_type': u'post'}, {u'quote': u'Great, great story.\nIt is however reported as a solo heroic strive rather than as a community effort. The article does mention the "biotech hacker space Counter Culture Labs", and then the Open Insulin project, but makes it sound as if the individual initiative were what mattered in solving the situation.\nI would be interested to know more about the story, and learn about the collective effort that was put in. (Although it could well have been the result of individual effort after all.)\nOn "where to put this stuff", I suppose we should start archiving these stories somehow. My guess is a wiki would do it ok (but I understand ER wikis have been used as single page wikis most of the time). A (collection of) hackpad (or anything similar)\xa0would probably be fine.', u'entity_id': 6667, u'annotation_id': 7998, u'tag_id': 993, u'entity_type': u'comment'}, {u'quote': u"There are heaps of literature how this splintering and individualization of society allows for a reorganization that allows modern industrial society to operate much better. Of course if one sees many of the problems industrial society brings with it, a case could be made that we've partially overdone it, perhaps to the detriment of our (and other peoples) health and our environment.", u'entity_id': 18613, u'annotation_id': 7997, u'tag_id': 993, u'entity_type': u'comment'}, {u'quote': u'Disease becomes individualized as \u201chealth', u'entity_id': 521, u'annotation_id': 7996, u'tag_id': 993, u'entity_type': u'post'}, {u'quote': u"I'm not 100% sure about my interpretation and would love Deborah to give us more hints about it.\n\n\nOn a side note, I would be interested to know if you (Deborah) have already thought about the interaction of the main task: adding the data\xa0tailored to your specific situation.\n\nIn my experience, even when the committment is pretty high (meaning the tool can for instance improve the quality of your life), a system that involves a lot of data entry tends to have a short life cycle, (unless the feedback is clear and constant and meaningful).\n\nI'm very interested in approaches where for instance the system knows when is the right time to ask you for the data, or in general where the data entry becomes organic, integrated in your routine, almost happening in the background.", u'entity_id': 15751, u'annotation_id': 12855, u'tag_id': 2097, u'entity_type': u'comment'}, {u'quote': u'I\'m very intrigued by this idea: "Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine.". It would leave out the parties who suck the most money of out\xa0of the local communities. But more interestingly, it would allow for personalized medicine. People with rare diseases or allergies, who are often neglected by corporations based on economical incentives. Empowering these people with the tools to provide for themselves or have a close one provide for them seems like a revolutionary way forward. Then again, safety and legal hurdles quickly come to mind. I hope there\'s at least room for experimenting with it.\n1000 people is already a lot... Congratulations!\xa0What do you feel is the biggest challenge in order to\xa0connect\xa0these existing, fragmented initiatives and replace competition in favor of cooperation?', u'entity_id': 7658, u'annotation_id': 8002, u'tag_id': 2097, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 8001, u'tag_id': 2097, u'entity_type': u'post'}, {u'quote': u'Figuring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects.\nChallenge\n(Customized) advice serving cancer patients during treatment (chemo, radiation,\u2026) to ensure optimal nutrition and exercise.\n\nfocusing on natural instead of artificially produced ingredients\nemphasizing the importance of regular and moderately intensive exercise.', u'entity_id': 711, u'annotation_id': 8000, u'tag_id': 2097, u'entity_type': u'post'}, {u'quote': u'But as the era of individualised medicine gathers steam, this is something that all forms of healthcare are going to have to grapple with.', u'entity_id': 15329, u'annotation_id': 7999, u'tag_id': 2097, u'entity_type': u'comment'}, {u'quote': u"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.\nNon-violence as a way of life, however, I do believe is nearly always good. It's just that open protest might not be the way to go. Instead, it might be being kind to one's oppressors. Or treating them with empathy. Nonviolent Communication is a good set of principles in many settings. But people have to be human. What good is non-violence in face of a pack of hungry wolves or hyenas? And sometimes, people lose their humanity, behaving like animals. It can be very hard to call back people's humanity, but perhaps always worth the effort?", u'entity_id': 19608, u'annotation_id': 8005, u'tag_id': 996, u'entity_type': u'comment'}, {u'quote': u"Hello Albero,\nI think that opencare was meant as a broader topic, indeed for me, inequality is strongly related to health.\xa0\nThe wealth that gets drained, without taxation, by platforms could/should be used to power many initiatives that are related to social care.\nAlso, the same giants that are in control of the dominating platforms are the one that we should fear more in the healthcare industry.\xa0\nCalico, a company that will tackle aging, is owned by Google. In general, the Silicon Valleys' company are investing a lot in Biotechnology and Healthcare, and this is because they know that they can dominate this sector.\nWe are in the Omics Era https://www.slideshare.net/swamihetal/omics-era, data are crucial and will lead in the coming 10/20 years to have personal medicine and gene therapy that could lead to an unprecedented extension of human lifespan.\xa0\nBig tech companies are the ones that know better how to harness information from data, that's why they know that they are going to compete with hospitals and with nationals public health sectors.\nIn general, I think it's important to analyze problem in a non-reductive way and that we should learn as much as possible on platforms' topics and counteract where we still can,\n\xa0but it could be a good idea to have also focused on health related platforms and companies (e.g. 23&me that do private analysis on DNA etc.)", u'entity_id': 18104, u'annotation_id': 8010, u'tag_id': 997, u'entity_type': u'comment'}, {u'quote': u'The digital economy produces enormous amounts of wealth that become profit (often non-taxed) for few billionaires. This money could be used to power the welfare state, nonprofit projects or a collaborative economy.', u'entity_id': 6300, u'annotation_id': 8009, u'tag_id': 997, u'entity_type': u'post'}, {u'quote': u"The same factors are at play\xa0for Open Insulin. If at one point, an experiment proves promising, a biotech company could take it from there and easily be faster. The peers (like the Belgium group) who want to contribute, can contribute though, but by getting more closely involved. At the end everything can be released, and hopefully this will shift some of the factors at play. Paving the way for a new way of protein engineering\xa0is also a goal of Open Insulin.\nNot sure if there's good answers, I'd love to discuss this more.", u'entity_id': 11937, u'annotation_id': 8008, u'tag_id': 997, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23506, u'annotation_id': 8007, u'tag_id': 997, u'entity_type': u'comment'}, {u'quote': u"It's become clearer that homelessness correlates much more with inequality (especially affordability in housing)\xa0than with a country's\xa0wealth, which is what might explain\xa0cultural shocks\xa0as one moves from east to west.. I'm reminded of a friend of mine studying in the US who simply couldn't get past having seen so many people living in the streets in\xa0San Francisco.\nI would be definitely interested to read about the specifics of family\xa0dynamics in Laos, so if you ever find the time do go for it.", u'entity_id': 29547, u'annotation_id': 8006, u'tag_id': 997, u'entity_type': u'comment'}, {u'quote': u'Also, build informal social events where people just meet. In what we do "sales" basically means really understanding what people you come across need and connect it with something you are doing. Then there\'s the research work to understand how they can put money into hiring you. Once you know this you can make an offer. So maybe it could work to split these tasks across the collective? We\'re getting there as we move into a space.', u'entity_id': 23272, u'annotation_id': 8019, u'tag_id': 999, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20863, u'annotation_id': 8018, u'tag_id': 999, u'entity_type': u'comment'}, {u'quote': u'You are probably not asking me, @Luisa (what do I know about the Parks and Open Spaces Department in Berlin, apart from the fact that its nam is probably one really long German word?). But if you can pull it off, an informal, safe discussion between the authorities and the people is very valuable. If you have a courageous politician or senior public officer at hand, you could ask her to come along as facilitator; the Parks people would feel authorized to attend\xa0because she is there, and they could have a chat off the record. But you need the right person.', u'entity_id': 23189, u'annotation_id': 8017, u'tag_id': 999, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 8022, u'tag_id': 1000, u'entity_type': u'post'}, {u'quote': u"I'm curious to know how the informal forums to share the 'tough stuff' are going since you posted this? Are people finding this is effective in managing work pace/load to reduce burnout?", u'entity_id': 23537, u'annotation_id': 8021, u'tag_id': 1000, u'entity_type': u'comment'}, {u'quote': u"Another point I wanted to touch on, is when you discussed wellbeing you asked if you could depend on informal relationships alone. I think it's important that individuals have access to professional care if/when they need it, but that doesn't diminish the role that informal relationships play in getting people to help and supporting them in their struggles. Along those lines, I think you might be interested in looking into bystander training, where members of your community who are interested can learn how to best support people, and connect them to the care they need. I'm not sure where you're based, but one I can recommend is Mental Health First Aid, which is offered (often for free) in a number of countries.", u'entity_id': 8009, u'annotation_id': 8020, u'tag_id': 1000, u'entity_type': u'comment'}, {u'quote': u"Even though me and most of the people I know haven't really grasped the reality in this information blockade, this is war...this is what war looks\xa0like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it\xa0started...", u'entity_id': 33738, u'annotation_id': 8024, u'tag_id': 1002, u'entity_type': u'post'}, {u'quote': u"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc.\n\n@WinniePoncelet, it could be very good if you could elaborate on why you don\u2019t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get?\n\nYou have a good point,@WinniePoncelet, \xa0we could imagine raising funds to have a FES bike that people could try locally.\n\nI\u2019ve learned two things recruiting wheelchair users as testdrivers\n\n\nThere is a perception that it may be physically harmful\nPeople are afraid of traffic. There is a perception that there are nowhere to use the a Handbike\n\n\nAs for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.)\n\nAs for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling). \xa0@Francesco Maria ZAVA\xa0and others we could\xa0work on this", u'entity_id': 23387, u'annotation_id': 12856, u'tag_id': 2098, u'entity_type': u'comment'}, {u'quote': u'Not clear what happens when people say \u201coh, let\u2019s have no structure and be free\u201d. Infrastructure is by definition invisible. We need to start understanding what it actually is.\n\n\nTory:', u'entity_id': 38811, u'annotation_id': 11738, u'tag_id': 2098, u'entity_type': u'post'}, {u'quote': u"it's really amazing, nice job @Rune, in my country there is a lot of people who suffer from weakening leg muscle and poliomelite. \xa0Those people are usually left aside and need someone's hand to move. On the other side, infrastructure and access to office, public area are not yet developed.", u'entity_id': 13970, u'annotation_id': 8029, u'tag_id': 2098, u'entity_type': u'comment'}, {u'quote': u"How can we build research into practice or at least make options much more accessible?\nThe question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community\nEven handbikes which are more popular can\u2019t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients.\nMy own group\u2019s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: \u201cThe FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living\u201d.\nWhy should you, me or anyone care about the future of research? you want to see your tax money spent well, don\u2019t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.", u'entity_id': 759, u'annotation_id': 8028, u'tag_id': 2098, u'entity_type': u'post'}, {u'quote': u'We are initiateing multilingual communities and living space with people who focus primarily on inner development. Where we are working on our consciousness, because the crisis in our society is a crisis of consciousness. We shift our focus inwards, develop our relationship skills and transform our social programming. There should be as few fixed guidelines as possible concerning the personality and lifestyle of the members except the common to work toward a higher level of development. There are no ideologies, no dogmatic requirements and no fixed concepts.\u201c', u'entity_id': 765, u'annotation_id': 8033, u'tag_id': 1006, u'entity_type': u'post'}, {u'quote': u'Ability to learn about and experiment with novel or unconventional approaches towards tackling root causes of problems which affect both newcomers and the host communities which welcome them.', u'entity_id': 5234, u'annotation_id': 8034, u'tag_id': 1007, u'entity_type': u'post'}, {u'quote': u'Situations ranging from daily doing basic movements such as walking, sitting down, eating, all the way to more detailed situations such as climbing a stair, or sleeping, are scenarios that we plan to test in the upcoming 2 months.\n\n\xa0\n\nWe have already published InPe\u2019s dedicated website http://inpe.opencare.cc, and will continue to add further testing stories, updates and data as we move on.\n\xa0\nStay tuned. More photos will follow in future post', u'entity_id': 6068, u'annotation_id': 8035, u'tag_id': 1009, u'entity_type': u'post'}, {u'quote': u'Dear @WinniePoncelet, I feel really glad to know that there is someone at the other part of the world , thinking the exact same process to make a positive change in the environment. I really felt good about the whole story from the beginning to collect them from a play and to saving them and nurturing. The efforts, time and energy you have given behind this , is truly amazing. I hope there will be more to this story, 4 other loving people like you will take those beautiful trees away and give them the proper care that they deserves. I hope to see more tiny apple fruits on the branches , and let others knoiw tbat they have life too, the strong will of surviving and more.\nThank you for comnmenting here, means a lot.', u'entity_id': 25251, u'annotation_id': 8036, u'tag_id': 1010, u'entity_type': u'comment'}, {u'quote': u'If the participants in the event want to see the transnational cooperation happen in practice, then they will have to learn to think and work as networks of individuals interacting inside, outside and all around different organisations. Each working at the hyperlocal, micro-level, while sharing and learning with others working in different contexts as a natural part of the everyday workflow\u2026 not just something afforded to people who can travel and spend 2 days talking with one another at a conference. And all of this done in ways that build granular, immediately relevant and continuously updated institutional memory accessible to all. Affecting behavioral change at this scale is hard, but it can be done.', u'entity_id': 5234, u'annotation_id': 8038, u'tag_id': 1012, u'entity_type': u'post'}, {u'quote': u"It's a valid point, @Rune . Honestly I am really scared by the ethical implications of research,\xa0any\xa0research. They can be paralysing. Of course, if your tools are lasercutters rather bioreactors, and your goal is design rather than human health,\xa0the ethics become less scary.\xa0\nIn practice, though, insulin is insulin. There are ways to test whether a chemical is, indeed\xa0insulin, or something else. And if it is, you are good: the same molecule should work in the same way, no matter its production process. Also, GMOs per se are not illegal in the U.S. Their attitude is very different from that of Europe.", u'entity_id': 24843, u'annotation_id': 8040, u'tag_id': 1013, u'entity_type': u'comment'}, {u'quote': u'This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.\xa0\nLucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks \u2013 an additional advantage to your idea.', u'entity_id': 20068, u'annotation_id': 8039, u'tag_id': 1013, u'entity_type': u'comment'}, {u'quote': u'insurance', u'entity_id': 22039, u'annotation_id': 8041, u'tag_id': 1014, u'entity_type': u'comment'}, {u'quote': u'After testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove', u'entity_id': 33751, u'annotation_id': 8043, u'tag_id': 1015, u'entity_type': u'post'}, {u'quote': u'We are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions \u2013 around complex protocols for under 5 child health, for example. We\u2019re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows.', u'entity_id': 564, u'annotation_id': 8042, u'tag_id': 1015, u'entity_type': u'post'}, {u'quote': u"The issues you're facing in your cohousing community actually sound a lot like the type we face in my university, especially how to align views on wellbeing when everyone comes from varied backgrounds, with sometimes completely\xa0divergent perspectives.\nOne thing we've taken to doing, in order to give a space for the range of views and thoughts\xa0on these topics is we hold semesterly fishbowl discussions. Possibly your community could benefit from adopting this format as one of its\xa0methods for exploring issues that arise.\xa0\n\nAnother point I wanted to touch on, is when you discussed wellbeing you asked if you could depend on informal relationships alone. I think it's important that individuals have access to professional care if/when they need it, but that doesn't diminish the role that informal relationships play in getting people to help and supporting them in their struggles. Along those lines, I think you might be interested in looking into bystander training, where members of your community who are interested can learn how to best support people, and connect them to the care they need. I'm not sure where you're based, but one I can recommend is Mental Health First Aid, which is offered (often for free) in a number of countries.\n\nHope some of this is useful! I would also love to hear more about how these issues are already being addressed within your community.", u'entity_id': 8009, u'annotation_id': 8045, u'tag_id': 1016, u'entity_type': u'comment'}, {u'quote': u'live in a eco-cohousing community of 40 homes, and over 60 adults. we have smallish separate PassivHaus homes; car sharing; a "Common House" where people cook and eat together; shared community tasks; and organisation and governance by consensus. It\'s quite large as cohousing goes, and while several values are common, there is also much diversity. Some minority groups find a home here: in our case, including vegans. We try to be inter-generational, though there are more older people than younger. That\'s partly due to economic factors.\nIt is a surprisingly complex little society, and any group like this has its own life, its own character, which would take a long time to describe. For Opencare, I\'d like to focus just on one of the challenges that I see here: how we engage with our own and each other\'s well-being. We have at present no special provision for caring for each other: it happens in some ways at some times, informally.\nSharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.\nWe do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?\nThis brings me to outlining the challenges that I, personally, see for our cohousing group. How do we collectively approach the issue of mental and spiritual well-being, with little common ground to start with? How can we then grow (in) a culture that effectively supports the well-being of individuals, and of the group as a whole? How can we be sure that an individual will receive the care that they need? Can we rely on informal relationships, or should we organise this in some way? Part of our well-being is the sharing of common purpose: how can we frame and agree our common purposes, from members whose values diverge? Are we fixed with the vision of the founders, or can we (and do we want to) move on?\nThese are hard questions to answer, but I have the sense that we will need to answer them more and more, if we are to develop the resilience that we will need as mainstream politics and economics unravel. We need now to care for each other\'s resources of time, energy and good will, and as we age, we will increasingly need to look after our health and strength if we are to achieve what we want to achieve, being a positive transformative influence in the world.', u'entity_id': 830, u'annotation_id': 8044, u'tag_id': 1016, u'entity_type': u'post'}, {u'quote': u'Teams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles.', u'entity_id': 38856, u'annotation_id': 11867, u'tag_id': 1017, u'entity_type': u'post'}, {u'quote': u'Legal frameworks and patents. How to make things reusable for everyone regarding regulatory and patent framework?', u'entity_id': 6459, u'annotation_id': 8050, u'tag_id': 1017, u'entity_type': u'post'}, {u'quote': u'Of course there are many issues about copyright, legal implications, safety, patenting and certification. What is sure is the interest not only at WeMake and other fab labs, but from the bigger community of innovators taking action inside opencare framework.', u'entity_id': 839, u'annotation_id': 8049, u'tag_id': 1017, u'entity_type': u'post'}, {u'quote': u'Patenting the Cardiopad\nHe also turned to the intellectual property (IP) system to help advance his work. In December 2011, he applied for a patent via the Organisation Africaine de la Propri\xe9t\xe9 Intellectuelle (OAPI) in Yaounde [see box]. OAPI later granted him a patent (No. 16213) on his technology, covering some aspects of both the software and the hardware.\nObtaining a patent was an important step for Mr. Zang. \u201cI did it to reassure myself,\u201d he said, \u201calso to protect the product, and to have a lot more credibility in the eyes of, for example, partners with whom I wanted to sign contracts in order to be able to produce and then sell the product.\u201d\nWhen funds permit, he also plans to register the Cardiopad, and his company, Himore Medical, which currently produces the tablet, as trademarks.\n\u201cThe intellectual property system can help us in Africa \u2013 it can add credibility to African products. And credibility has repercussions on the business plan because if you aren\u2019t credible, it\u2019s difficult to sell your product,\u201d says Mr. Zang.', u'entity_id': 555, u'annotation_id': 8048, u'tag_id': 1017, u'entity_type': u'post'}, {u'quote': u'adopted. And only if radical openness is adopted one can truly claim no responsibility over the final "accidents" that will always happen (only that which does not work, will not break).\xa0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model "exploitative", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.', u'entity_id': 23523, u'annotation_id': 8047, u'tag_id': 1017, u'entity_type': u'comment'}, {u'quote': u'almost\xa0"ethical": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as\xa0gut feeling here, but I am open to discuss it in depth later)\xa0the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final "accidents" that will always happen (only that which does not work, will not break).\xa0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model "exploitative", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.', u'entity_id': 23523, u'annotation_id': 8046, u'tag_id': 1017, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30614, u'annotation_id': 8057, u'tag_id': 1020, u'entity_type': u'comment'}, {u'quote': u'A very basic event which happened in a lot of cities over the last years, including\xa0where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one\xa0would\xa0stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in.\nMore about this and a video:\xa0https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/', u'entity_id': 14948, u'annotation_id': 8056, u'tag_id': 1020, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 657, u'annotation_id': 8055, u'tag_id': 1020, u'entity_type': u'post'}, {u'quote': u'Our task will be to explore how we may then model\xa0interaction between users,', u'entity_id': 32719, u'annotation_id': 8054, u'tag_id': 1020, u'entity_type': u'comment'}, {u'quote': u"Race, religion and resource issues overlap in a fraught and challenging space. It is surprising that it doesn't descend into violence more often. The fact it doesn't is a testament to the work done by volunteers, and faith and community leaders on the camp.", u'entity_id': 536, u'annotation_id': 8052, u'tag_id': 1018, u'entity_type': u'post'}, {u'quote': u"These moments also show you how angry people are. Refugees stop you in their shelters, or on the paths around the camp. Inter-community tensions seeps out through small cracks. The walls and fences of the Calais port don\u2019t discriminate between nations. So neither does the camp. Afghanis rub up against Iranians, Indians, Sudanese and Syrians. Some communities are better established on the camp. Some manage their resources and people better than others. Some communities have established 'leaders' who act as a lynchpin for fellow countrymen. I met a young Indian refugee who was angry there was no Indian community leader. I explained to him he was the first refugee from India i had met on the camp. He was de facto the community leader for his nation.", u'entity_id': 536, u'annotation_id': 8051, u'tag_id': 1018, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 669, u'annotation_id': 12859, u'tag_id': 2100, u'entity_type': u'post'}, {u'quote': u"@Big_Bang_Schools welcome from me too!\n\nI'm\xa0a bit late to the party, but I'm curious if you also work with secondary and high schoolers? My mum teaches at a pretty mainstream school in Romania and was just telling me the other day that they would love to partner up with schools abroad for creative exchanges betweel pupils. Is that something you would consider? Also, if you're involved in international educational projects and could use a partner in this area, let me know!", u'entity_id': 21394, u'annotation_id': 12858, u'tag_id': 2100, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 684, u'annotation_id': 8060, u'tag_id': 2100, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 8059, u'tag_id': 2100, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 657, u'annotation_id': 8058, u'tag_id': 2100, u'entity_type': u'post'}, {u'quote': u'Hi @zazie and welcome to edgeryders and thanks for jumping in!\xa0I think @Patrick_Andrews above was onto something when specifying their aim is to be inter-dependent, since going in as an outsider could (unintendently)\xa0add to the list of things that are not going as one would hope. Are you working in the British care system..?', u'entity_id': 26959, u'annotation_id': 12860, u'tag_id': 1022, u'entity_type': u'comment'}, {u'quote': u"replying to you, @Noemi , I agree it is very valuable for people to have open options for moving on -- from relationships as well as living communities. On the other hand, I value genuine heartfelt commitment, where you commit to staying (unless there is unavoidable danger or intolerable hardship in staying). As we become more economically interdependent (as I think we will be as our current economy unravels) we need to recognise as well that moving out is really hard to arrange sometimes. As it was in the old days for women in marriage. I'm not saying go back there, I am saying let's all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment. I happen to believe that this kind of commitment is also very good in the long term for our spiritual growth.", u'entity_id': 22761, u'annotation_id': 8065, u'tag_id': 1022, u'entity_type': u'comment'}, {u'quote': u'(Final thought - have done some volunteer work in a day care centre for adults with learning difficulties before... Perhaps a similar model, with day facilities and night care facilities built separately, or being more intermingled than just nursing home residents gathered in their particular nursing homes 24/7, would be a good idea. Those who were more capable could use cooking facilities, make and create, etc. whilst in their "day environment," and other age groups or people living in the local area could also come and use such facilities / interact / assist? Again, funding would be an issue, especially in our current environment of service cuts and the loss of community centres and other such facilities. However, in the long run, I do think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS \xa32bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...)', u'entity_id': 29962, u'annotation_id': 8064, u'tag_id': 1022, u'entity_type': u'comment'}, {u'quote': u'Have seen good examples of "care villages" elsewhere, especially designed to deal with dementia and Alzheimer\'s cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused\xa0society.', u'entity_id': 26047, u'annotation_id': 8063, u'tag_id': 1022, u'entity_type': u'comment'}, {u'quote': u'Very interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word "autonomy" in the sense of "a state of\xa0not\xa0having to be coupled with the world at large in a way we find troubling." Some people in Edgeryders uphold a similar concept, dependency reduction.', u'entity_id': 20474, u'annotation_id': 8062, u'tag_id': 1022, u'entity_type': u'comment'}, {u'quote': u'1) I had a chat with the Woodbine crew about setting up an event at Woodbine around autonomy, health and interdependency. A convening, but not just for talking. A combination of showcasing/discovering some relevant OS tools, aggregating information resources and working out some social contract/model for supporting work on their further development. I am up for putting time into making it happen.', u'entity_id': 19249, u'annotation_id': 8061, u'tag_id': 1022, u'entity_type': u'comment'}, {u'quote': u"Hi Noemi, in response\xa0 to your post, I would say we want to be inter- dependent,\xa0 not independent!\xa0\xa0\xa0 I guess I wrote the original post in rather a hurry, in response to the Open&Change\xa0 call, so\xa0 it probably didn't get it quite right.\xa0\xa0 I see our project as forging some third way between state or charity\xa0 ownership on the one hand, and private for-profit ownership on the other.\xa0 it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.\xa0 I envisage a movement of care homes,\xa0 highly networked,\xa0 helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are\xa0 starting slowly", u'entity_id': 24250, u'annotation_id': 8053, u'tag_id': 1019, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 8075, u'tag_id': 1023, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 653, u'annotation_id': 8074, u'tag_id': 1023, u'entity_type': u'post'}, {u'quote': u"Thanks, @Alberto. You coined it perfectly '\xa0This is about patients\xa0being\xa0researchers, and viceversa'. Actually we try to avoid terms like patients (https://en.wiktionary.org/wiki/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.", u'entity_id': 26952, u'annotation_id': 8073, u'tag_id': 1023, u'entity_type': u'comment'}, {u'quote': u'here will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices.', u'entity_id': 720, u'annotation_id': 8072, u'tag_id': 1023, u'entity_type': u'post'}, {u'quote': u'cover many diciplines (also just as contact persons)', u'entity_id': 12142, u'annotation_id': 8071, u'tag_id': 1023, u'entity_type': u'comment'}, {u'quote': u'How could we open the debate about the strength of intergenerational care.', u'entity_id': 541, u'annotation_id': 12861, u'tag_id': 2102, u'entity_type': u'post'}, {u'quote': u'A friend of mine, expat living in Cluj, has\xa0similar questions to yours and he\'s starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\xa0events branded as such -\xa0"you should spend time with strangers, it\'s healthy and fun".\nIt\'s nice because it starts with a personal burning point and doesn\'t pretent it will find answers. Needing to', u'entity_id': 7822, u'annotation_id': 8100, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'Thanks for the headsup @Alberto . Insightful words from @zazie .\nI have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?', u'entity_id': 28735, u'annotation_id': 8099, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'(Equally mixed communities and inter-generational interaction would help, but this is increasingly rare. Housing seems to be led by developers keen to focus on young families who have income to buy new-builds on new estates, and marketing focuses on the younger age groups that go\xa0our and spend their disposable income, hence society focuses around such people. What would help is a societal background that valued the more elderly or mature, for their experience, wisdom and human stories.)', u'entity_id': 27817, u'annotation_id': 8098, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'Have seen good examples of "care villages" elsewhere, especially designed to deal with dementia and Alzheimer\'s cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused\xa0society.', u'entity_id': 26047, u'annotation_id': 8097, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'Yes - to the idea of intergenerational interaction and care, yes to more community involvement and interaction for residents; but also yes to actually researching the practicalities involved...', u'entity_id': 26047, u'annotation_id': 8096, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 801, u'annotation_id': 8095, u'tag_id': 2102, u'entity_type': u'post'}, {u'quote': u'This is a beautiful story.\nIn an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms.\nIt seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they\u2019re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them\xa0tech-savvy skills like using email, social media and Skype.\xa0The bonding created from spending time together is incredibly important for everyone. Social relationships are key\xa0to human well-being and in the maintenance of health.\xa0The intergenerational living model started in 2012, with a few more nursing homes follow. \xa0Regular social interaction is necessary for mental health as well as social interaction.\nRead the complete story here: \xa0https://goo.gl/LYUpPP', u'entity_id': 809, u'annotation_id': 8094, u'tag_id': 2102, u'entity_type': u'post'}, {u'quote': u'Interesting story, @Yannick . I play computer games a bit myself, and found myself thinking about how the "intergenerational up-levelling" would work. Would the game need to know your age? And register your grandma\'s as a player? And she would "approve" your up-levelling? Gamers have a long tradition of "cheatsheets", and I can very well see someone logging in as gramdma to get the magic sword. If you (the game designer) fight it, then you get into a mess of identity verification...\xa0\nI wonder if anyone has tried to design games where the gameplay itself\xa0favour intergenerational teams. Imagine a detective game where you\'d need to be familiar with both youth-friendly and older generation-friendly cultural references. These can be quite badass: my mother\'s slightly older cousins, who lived through WW2 at the age of about 10, could tell the weapon from the sound of gunfire, or whether an aircraft was doing reconnaisance or likely to bomb their asses based on the engine\'s whine.\nI would have no idea ho to make it interesting to the young kids, though...', u'entity_id': 20567, u'annotation_id': 8093, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'A couple of years ago i participated to a contest called \u20185 voor 13\u2019 that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don\u2019t visit grandma anymore because she is to old\u2026\nFor my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together.\nI grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn\u2019t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I\u2019m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my \u2018m\xe9m\xe9\u2019 stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.', u'entity_id': 783, u'annotation_id': 8092, u'tag_id': 2102, u'entity_type': u'post'}, {u'quote': u'So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii\u2019s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?', u'entity_id': 783, u'annotation_id': 8091, u'tag_id': 2102, u'entity_type': u'post'}, {u'quote': u'@LotfiAndSelvi \xa0@Noemi Intergenerational communities are indeed necessary to increase social connectedness and cultivate building better living conditions for the older generation. Whether its students living with the care homes and volunteering to have the elderly care for the young, it\u2019s a circle.\nThis may also be of interest\nConnecting generations is not just a "nice idea" I think it\u2019s necessary. For the younger generation who may have not had the presence of grandparents or the presence of older generations creating an influence in their life this is an added value for them, it connects the past, present and future in one conversation. Whether you\u2019re at either end of life- there are similarities.\xa0\nThere are tremendous benefits of these connections. There is a lot of talk to help older people, but perhaps they can help the young. It\'s the experiences of life in a multigenerational, interdependent, abstract community that, more than anything else, teaches us how to be human. The older generation often is faced with isolation- which in turn creates the backdrop for cognitive decline. We all know that. If we can improve the standing of older adults in society, and nurture what they can bring through to the table, then we can achieve a better community with a better quality of life for all ages. With their practical knowledge, some may use the term wisdom, gained from experience, and because they carry with them a whole world lost to younger generation, they may well be our greatest social capital. There are some projects out there, but its a topic craving attention.\nIn the US there is an initiative with this care model called Generations of Hope.', u'entity_id': 26052, u'annotation_id': 8090, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u"Hey @LotfiAndSelvi, this reminds me of another Belgian project called DUO for a JOB. Their tagline 'integenerational coaching' sums it up well: older people passing on their skills to young people with a migrant background. Is that something you envision as well? It might be insightful to talk to them as well.\nIn my home town we have a related story going on. The old movie theater \xa0in the city centre, a beautiful building with a rich history and emotional meaning for\xa0a lot of people, was bought by project developers after bankruptcy. They plan to install service flats where elderly that are still okay can live in co-housing with people who need care, like other elderly or young people with a disability. Yet the whole project has a very commercial smell hanging around it. Do you meet similar stories, is there an impact on the sector?", u'entity_id': 24001, u'annotation_id': 8089, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u"There are a number of\xa0interesting intergenerational care projects internationally - including:\xa0Present Perfect - USA & Fureai Kippu - Japan.\nThe Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.\xa0\nI understand there's an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.", u'entity_id': 20476, u'annotation_id': 8088, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u"So the lovely\xa0@CommonFutures has just shared this in response to my tweet asking for help:\xa0Intergenerational Housing in Deventer.\nIt's really something:\xa0a project started in 2013 for a new elderly\xa0retirement\xa0home where students pushed back by unaffordable student housing can also live\xa0without paying rent,\xa0and in exchange volunteering 30 hrs of social activities per month.", u'entity_id': 15200, u'annotation_id': 8087, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'Hi @LotfiAndSelvi, you say the elderly "are viable resources for the development of our society" - what do you have in mind? Twenty years of working for them must be pretty righ in insights.\nI only know of very sporadic activities that are intergenerational - and most happen around holidays: for example youth taking presents to care homes and spending time with their new grannies for a day or so. It seems to put a smile on people\'s faces, but of course its not substantial, as\xa0what you are talking about.\xa0\nCurious if new (co)living models such as @Simonedb\'s has good news about what can be achieved if generations help each other remain active under the same roof. Are you seeing that Simone or is everyone in your houses still fairly young?', u'entity_id': 8168, u'annotation_id': 8086, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 789, u'annotation_id': 8085, u'tag_id': 2102, u'entity_type': u'post'}, {u'quote': u"Politically, we can see a large divide in the aspiration and acceptance of 'outsiders' between the generations.", u'entity_id': 27819, u'annotation_id': 8084, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'I wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about\xa0children moving\xa0away to become independent is true, and so living\xa0with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..', u'entity_id': 15792, u'annotation_id': 8083, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u'For exemple the old people are separated from the rest of the adults, they don\u2019t have a connection. Why do you do that? We don\u2019t talk about generational society, we don\u2019t attach value to\xa0the older people\xa0here and that makes me worry. I hear a lot about that here we work a lot about societal diversity, but not generational diversity', u'entity_id': 790, u'annotation_id': 8082, u'tag_id': 2102, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11006, u'annotation_id': 8081, u'tag_id': 2102, u'entity_type': u'comment'}, {u'quote': u"The City of Milan is organizing a seminar on thursday 23th of February from 2pm to 5 pm at WeMake / Milan, in order to present Open Care to a network of civil servants from European cities. The event is part of a three days Eurocities' Study Visits focused on Social Entrepreuneurship.\n\n[The Study Visit detailed programme will be available asap].\n\nMilan has founded Eurocities in 1986 together with Barcelona, Birmingham, Frankfurt, Lyon and Rotterdam. The network today brings together 130 of Europe's largest cities and 40 partner cities, that between them serve 130 million citizens across 35 countries. Eurocities consists of a platform for sharing knowledge and exchanging ideas through six thematic forums, a wide range of working groups, projects, activities and events.\n\nMilan is taking part in the working group Social Affairs > Smart Social Inclusion, working out solutions to a better spending and for better social outcomes.\n\nParticipants in this working group discuss subjects such:\n\n\nHow to respond to reduced public spending and higher demand for social services, investing in a smarter and innovative way?\nWhat is the role of cities in promoting social entrepreneurship and social economy?\n\n\nParticipants will be invited from Municipalities of Acharnes, Amsterdam,\xa0 Antwerp,\xa0 Athens, Barcelona, Belfast,\xa0 Besiktas,\xa0 Beylikd\xfcz\xfc,\xa0 Birmingham,\xa0 Bonn,\xa0 Brno,\xa0 Bydgoszcz, Cardiff, Copenhagen, Dresden, Essen, Brussels, Gdansk,\xa0 Geneva,\xa0 Genoa,\xa0 Ghent,\xa0 Gothenburg,\xa0 Helsinki,\xa0 Katowice,\xa0 Leeds,\xa0 Lisbon,\xa0 Ljubljana,\xa0 Madrid, Manchester, Milan, Munich, Nantes, Netwerkstad, Twente, Newcastle-Gateshead, Nice Cote d\u2019Azur, Nicosia, Osmangazi, Ostend, Porto, Rennes Metropole, Riga,\xa0 Rome,\xa0 Rotterdam,\xa0 Sheffield,\xa0 Stockholm,\xa0 Stuttgart,\xa0 Tallinn, Turin, Turkish Cypriot community of Nicosia, Uppsala, Utrecht, Vantaa, Warsaw, Zagreb, Zurich.\n\nIf you are interested in taking part at the seminar feel free to send an email to milano_smartcity@comune-milano.org", u'entity_id': 6108, u'annotation_id': 12862, u'tag_id': 1025, u'entity_type': u'post'}, {u'quote': u'One of the actions that Vlad took in the short period of time he\u2019s been in charge is to make a\xa0smart alliance with\xa0 more countries: Bulgaria, Moldova, Croatia, Latvia, Macedonia, Poland, Serbia, Slovenia and Slovakia,\xa0 in order to get better access to medication. More countries means more people, so a much\xa0 bigger market, a fact that would discourage the Pharma companies to ignore it by withdrawing a medicine\xa0 by citing\xa0 small numbers in sales.', u'entity_id': 517, u'annotation_id': 8101, u'tag_id': 1025, u'entity_type': u'post'}, {u'quote': u'Our 18 guests from 13 European Cities were very interested and reacted with their own examples and some questions.\n\nThe representative of City of Porto for example, mentioned their project called \u201cBridge to the Future\u201d. They brought together elderly people, students, companies to discuss, understand and think solutions for elderly people problems. The best outcome would eventually be tested in a Shark-Tank like arena of investors, to pitch their core ideas. People asked if OpenCare has provided a budget also for prototyping. The EdgeRyders platforms rose interest in participants. Guests from France and Holland questioned if the platform was inclusive enough, given than it takes a degree of internet literacy to use it. Polish guests asked if, using English as a common language wasn\u2019t limiting. @Rossana_Torri and @Costantino provided answers and stimulated the discussions. The morning ended with a recap session where participants have been asked to provide a SWOT analysis of OpenCare. Results will be presented tomorrow in the morning session.', u'entity_id': 24477, u'annotation_id': 12864, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u"The City of Milan is organizing a seminar on thursday 23th of February from 2pm to 5 pm at WeMake / Milan, in order to present Open Care to a network of civil servants from European cities. The event is part of a three days Eurocities' Study Visits focused on Social Entrepreuneurship.\n\n[The Study Visit detailed programme will be available asap].\n\nMilan has founded Eurocities in 1986 together with Barcelona, Birmingham, Frankfurt, Lyon and Rotterdam. The network today brings together 130 of Europe's largest cities and 40 partner cities, that between them serve 130 million citizens across 35 countries. Eurocities consists of a platform for sharing knowledge and exchanging ideas through six thematic forums, a wide range of working groups, projects, activities and events.\n\nMilan is taking part in the working group Social Affairs > Smart Social Inclusion, working out solutions to a better spending and for better social outcomes.\n\nParticipants in this working group discuss subjects such:\n\n\nHow to respond to reduced public spending and higher demand for social services, investing in a smarter and innovative way?\nWhat is the role of cities in promoting social entrepreneurship and social economy?\n\n\nParticipants will be invited from Municipalities of Acharnes, Amsterdam,\xa0 Antwerp,\xa0 Athens, Barcelona, Belfast,\xa0 Besiktas,\xa0 Beylikd\xfcz\xfc,\xa0 Birmingham,\xa0 Bonn,\xa0 Brno,\xa0 Bydgoszcz, Cardiff, Copenhagen, Dresden, Essen, Brussels, Gdansk,\xa0 Geneva,\xa0 Genoa,\xa0 Ghent,\xa0 Gothenburg,\xa0 Helsinki,\xa0 Katowice,\xa0 Leeds,\xa0 Lisbon,\xa0 Ljubljana,\xa0 Madrid, Manchester, Milan, Munich, Nantes, Netwerkstad, Twente, Newcastle-Gateshead, Nice Cote d\u2019Azur, Nicosia, Osmangazi, Ostend, Porto, Rennes Metropole, Riga,\xa0 Rome,\xa0 Rotterdam,\xa0 Sheffield,\xa0 Stockholm,\xa0 Stuttgart,\xa0 Tallinn, Turin, Turkish Cypriot community of Nicosia, Uppsala, Utrecht, Vantaa, Warsaw, Zagreb, Zurich.\n\nIf you are interested in taking part at the seminar feel free to send an email to milano_smartcity@comune-milano.org", u'entity_id': 6108, u'annotation_id': 12863, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u'2. How do we do international collaboration?\n\n\nWinnie:', u'entity_id': 38856, u'annotation_id': 11875, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u"linking this with @baderdean 's concern on the opensource collaboration within the African communities, also check the link in maping github in this comment on his topic. how do you think an african-african collaboration can come into action, even within communities not governments ( as you mentioned Gov's in Africa tend to trust European/US entities rather than their own people )", u'entity_id': 38834, u'annotation_id': 11846, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'now reading this and your paper, and thinking about our small discussion with laurel and (..) on fablabs, hackerspaces in different countries.', u'entity_id': 38834, u'annotation_id': 11843, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'In my context, international partnership is very helpful, because our Government doesn\u2019t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner\u2026like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don\u2019t know our realities. They don\u2019t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.', u'entity_id': 37591, u'annotation_id': 11812, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'You say impact as scale needs government, and gov support is easiest achieved when having international backup. Is international partnerships/ funding/ media something you are staying away from, intentionally, or have you tried and failed? Or maybe you find it very expensive to get that kind of exposure?', u'entity_id': 37423, u'annotation_id': 11802, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'Csengele: heard about OpenVillage from the Internet, isnt sure. Student at Waldorf school, "I\xa0don\u2019t work in health\xa0field. In the last year I organized an int\u2019l youth conference for graduates" \u2013 the topic was \u201chow can we create a new world\u201d? How can we see the system that we are now in, step out from highschools, and how to make a change?\u201d\n-How Banks are working and whats the difference with ethical banks;\n-How can we build up communities? \u201cI\u2019m in a gap year\u201d', u'entity_id': 6372, u'annotation_id': 8119, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u'The optimization part is something that we could work on\xa0here in Belgium. Federico is based in China/Amsterdam, so he is around close enough to help us get started and betatest his chip. This would give a new dimension to replicating the work previously done by CCL, if we could test culturing the bacteria on the chips. If it works, it would even be pretty valuable step towards opening up biotech research in general.', u'entity_id': 6291, u'annotation_id': 8118, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u'2. Research status\nCurrent step: awaiting the arrival of the plasmid samples from the team in Oakland.\nNext step: use the plasmids to transform E. coli, in order to replicate the work of Oakland and set a reference point for further optimization.\nUpdates from the Oakland team can be found on their website.', u'entity_id': 6412, u'annotation_id': 8117, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u'hello Edgeryders,\nI am part of the golden foot collective. we took a mobile independent footcare clinic\xa0and cinema\xa0from scotland to italy and serbia. \xa0To help in the migrant crisis. there were\xa08 of us and we had 2 nurses and 2 mechanics. everyone had done\xa0some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.\xa0 it all worked well. \xa0since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments?', u'entity_id': 860, u'annotation_id': 8116, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u"Are your tools and publications available to people in other countries interested in following your model? I'm a nurse in Ireland involved with various community projects, and believe the street nurses model would be a great fit for here.\nAlso, how do you maintain patient privacy while treating people on the street? Part of my work is looking at care on the move and related design solutions.", u'entity_id': 15524, u'annotation_id': 8115, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27813, u'annotation_id': 8114, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'your concept is really awesome and supercool.Using technology to reach out to the world with sustaibale E-health solutions in schools, hospitals and community events. With this great resource, i think quality information will be accessible for people and this will help save lives.. Good job, i am very impressed. Many of us will definitely love to collaborate with you to make the concept widely known especially in Africa. \xa0You could reach out to mbotiji@gmail.com. Thanks', u'entity_id': 27796, u'annotation_id': 8113, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'Thanks!\nAt the Department of Medicine of the University of Parma we are collaborating quite a lot with foreign countries.\nI will contact you.', u'entity_id': 28457, u'annotation_id': 8112, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'I\'m sorry I was confused. I listed the questions that we hoped we could address by our presentation. My question is "What is the best way share our project and our interest in working on other organizations around the world?"', u'entity_id': 15247, u'annotation_id': 8111, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.\xa0\nIn the software world, we see this a lot. Turns out much software work is "packetizable": the whole is much\xa0more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think\xa0Wikipedia: it is so great because it spans human knowledge, but I can work\xa0on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.\xa0\n@dfko , is making\xa0open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?', u'entity_id': 19322, u'annotation_id': 8110, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.\xa0\nIn the software world, we see this a lot. Turns out much software work is "packetizable": the whole is much\xa0more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think\xa0Wikipedia: it is so great because it spans human knowledge, but I can work\xa0on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.\xa0\n@dfko , is making\xa0open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?', u'entity_id': 19322, u'annotation_id': 8109, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u"while.\nI was wondering:\xa0which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally.\xa0The biohackerspace in Ghent, Belgium where I'm involved surely would be.", u'entity_id': 14446, u'annotation_id': 8108, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, "restoring the zombie economy", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?\xa0\nEven though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what\'s happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.', u'entity_id': 704, u'annotation_id': 8107, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 8106, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 26037, u'annotation_id': 8105, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u"The big advantage is that all global groups\xa0are interconnected for the information aspect. The international element\xa0will probably happen relatively smoothly if the right digital infrastructure and practises are in place, as there is a clear incentive to do so: faster learning, collective intelligence. Coordination costs should be low, there's only information being shared and this is cheap and fast if you have people who keep track of data.", u'entity_id': 25366, u'annotation_id': 8104, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u"The project is still going well in technical terms. Only now, due to time and communication constraints, international collaboration seems possible. A\xa0local group in Sydney just launched a few weeks ago and already made good progress. Other groups are open to launch a local chapter.\nWe'll be launching a chapter\xa0in Belgium to see if our community is up for joining this. Like that\xa0we will test the international collaboration and see where it leads us, perhaps others will join as well.", u'entity_id': 23778, u'annotation_id': 8103, u'tag_id': 1026, u'entity_type': u'comment'}, {u'quote': u'Together with Antonis Diamantidis, a fellow food sovereignty activist, farmer, and organiser of a CSA group of producers called \u2018Corinthian Orchard\u2019 we have just launched this scheme aiming to create direct links between small agroecological producers of Greece and CSAs, food coops etc in other European countries by providing each party with what they need in a fair and respectful way. Our goal is to not compete with the local farmers and thus we will only export produce that is consumed but does not grow in their regions -like citrus fruits and olive oil. Through this we will be actively supporting small Greek farmers, who suffer from land fragmentation and stand...at the bottom of the food chain with respect to the markets and the middlemen. We are also hoping to include \u2018ugly fruits\u2019 in this scheme raising even more awareness on food dumping/waste/loss issues. For more information on this please look here or write to antonis@perivolikorinthou.gr', u'entity_id': 560, u'annotation_id': 8102, u'tag_id': 1026, u'entity_type': u'post'}, {u'quote': u'Information security professionals may not be prepared for IoT after all\n\n"Even with awareness of vulnerable devices at an all time high, information security professionals are not equipped to address the growing threats."\n\n  \n  \n    \n    \n  \n  \n\n\n\nAs you might expect, the IoT is fraught with security holes and a growing population of users who are rather unconcerned about it - mainly because they don\'t know and don\'t think about it enough. \xa0But do you want someone hacking into your Google Car? \xa0This article points out that many IoT devices and projects don\'t even know all that connect to them.', u'entity_id': 5469, u'annotation_id': 12865, u'tag_id': 1028, u'entity_type': u'post'}, {u'quote': u'thanks! \xa0apparently an acoustic based sensor that recognises running water sounds is the basis for the water stewardship plan (non-evil IoT! so many projects and ideas out there - it is implementation that is always the biggest challenge imho!', u'entity_id': 12391, u'annotation_id': 8125, u'tag_id': 1028, u'entity_type': u'comment'}, {u'quote': u'"The iot assisted garden" - might be a good fit for Open Science and Citizen Science for more inclusive healthcare. I think Ken will talk to @Winnie about this soon.', u'entity_id': 24984, u'annotation_id': 8124, u'tag_id': 1028, u'entity_type': u'comment'}, {u'quote': u"I'm more worried about people hacking into my computer. My computer is part of me / my brain.\xa0OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.\nI don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable.\nSo my point is: This IoT security panic is being blown out of proportion. It's nothing new.\nSure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.", u'entity_id': 10467, u'annotation_id': 8123, u'tag_id': 1028, u'entity_type': u'comment'}, {u'quote': u"I'm more worried about people hacking into my computer. My computer is part of me / my brain.\xa0OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.", u'entity_id': 10467, u'annotation_id': 8122, u'tag_id': 1028, u'entity_type': u'comment'}, {u'quote': u'Interoperability, knowledge transfer and Institutional memory: I heard many calls to \u201cmake information available about how the system works\u201d, and "calls for online platforms to fix a perceived\xa0lack of information" thought to be a "key obstacle for labor market access". Here too I head that \u201cwe need a database of all the initiatives and resources available to help refugees\u201d and "we need to make existing information about getting your paperwork done, how to set up a new business etc".\xa0There are\xa0three underlying assumptions: 1) That some people understand in detail \u201chow the system works\u201d as a whole and 2) That they can transmit that kind knowledge into brochures or documents and that 3) This information material will make the system navigable and penetrable for newcomers. These three assumptions do not hold up to scrutiny and could fill an entire blogpost with reasons as to why. For now I will simply refer you to the Brickstarter report as it is a light, beginner-friendly introduction to some of the issues.', u'entity_id': 5234, u'annotation_id': 8134, u'tag_id': 2106, u'entity_type': u'post'}, {u'quote': u'he challenge will be to develop a vehicle for this willingness which is capable of \u2018interfacing\u2019 with existing institutions and accessing resources,', u'entity_id': 493, u'annotation_id': 8126, u'tag_id': 2106, u'entity_type': u'post'}, {u'quote': u"It's interesting then to wonder what still needs to happen for a large scale shift. And who will lead it: citizens, government, private sector, ...? The potential is there and many (business or other) models are possible to tap into it. This calls for a catalyst I think:\xa0a party that is relatively uninvolved\xa0to help accelerate things in the right way, whatever that is,\xa0preferrably by facilitating implementation.", u'entity_id': 30319, u'annotation_id': 8141, u'tag_id': 1030, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 26064, u'annotation_id': 8143, u'tag_id': 1032, u'entity_type': u'comment'}, {u'quote': u'This resonates with an Edgeryders\xa0conversation thread\xa0that predates opencare.\xa0It says this: the "meeting"\xa0or "assembly" format claims to be inclusive, but in fact it is not. Instead, it rewards extrovert, confident, even narcissistic personalities. Introverts don\'t like to speak in public,\xa0certainly not without thinking things through. So they never speak. This issue has come to the fore in the hacker community, where many skilled developers identify as intros. Intros like online, where they can take time to think things through, and where they do not have to interrupt others to claim space.\xa0See for example\xa0this great comment\xa0by @trythis\xa0and the thread that comes with it. As a result, offline spaces are exclusionary. They do not know it...\xa0because they exclude\xa0the people who never speak up.', u'entity_id': 6069, u'annotation_id': 8146, u'tag_id': 1033, u'entity_type': u'post'}, {u'quote': u'Me, I am not so sure that things get done in meetings, nor that real world meetings are more likely to lead to real world actions. But your point stands: collaboration environments that are friendly to introverts are a good thing.', u'entity_id': 30315, u'annotation_id': 8145, u'tag_id': 1033, u'entity_type': u'comment'}, {u'quote': u'Whether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority', u'entity_id': 29955, u'annotation_id': 8144, u'tag_id': 1033, u'entity_type': u'comment'}, {u'quote': u'Pavlos is involved with climatetracker.org, an international team of young writers and quite possibly the biggest environmental youth movement of people from all around the world. These are decentralized and nonhierarchical groups led by activists in the Carribean, Europe, Latin America. They cover events in UN or COPs but also do investigative journalism on a local scale. Their work unmasks lobbies and harmful practices and has been published in key media across the globe. They also organize webinars and campaigns and often encourage writers to concentrate on a certain issue in a given period of time.', u'entity_id': 704, u'annotation_id': 8148, u'tag_id': 1034, u'entity_type': u'post'}, {u'quote': u'Looking forward to seeing details of the second generation. If I talk to potential investers I will direct to your site. If there was some blog activity it would be reassuring for investers. Real-life examples of the product being used for diagnosis would also be a plus.', u'entity_id': 8871, u'annotation_id': 8149, u'tag_id': 1035, u'entity_type': u'comment'}, {u'quote': u'The third scope of our work is supporting civil society with our IT skills. One of the results of such collaborations is a volunteer management platform - available for free, as well.', u'entity_id': 528, u'annotation_id': 8150, u'tag_id': 1036, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 781, u'annotation_id': 8157, u'tag_id': 1041, u'entity_type': u'post'}, {u'quote': u'I come from Thessaloniki, and my ancestors were refugees. Initially, the response from my immediate environment has been disappointing. My job is in the clothing sector, however, being an elected Municipal Councillor at the City of Thessaloniki, people know my public activity so it was easy to build trust. Furthermore, I am sitting at the Management Board to the Municipal TV100 station. Having many contacts with journalists helped to communicate the action widely. All this combined has resulted in the massive spontaneous response of a community of 1500 citizens from all walks of life. Including people from Europe and the US, who donated waterproof jackets and blankets.', u'entity_id': 737, u'annotation_id': 8158, u'tag_id': 1042, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 8160, u'tag_id': 1044, u'entity_type': u'post'}, {u'quote': u"There is another task, which is more time-consuming and complex, in terms of research. I'm in the team-building process that will eventually become a non-profit legal entity, to develop a Handbook for the Management of Material and Resources, in cases of emergency. For example, due to my professional background, I know how to sort and store thousands of clothing items. Somebody else might have other skills. This is also connected with the sharing of knowledge of alternative treatments, practices or hacks, that might offer cheap and practical solutions to people in need. For example, using cocoa powder as a shampoo, or other uses of baking \xa0soda, salt, etc.", u'entity_id': 737, u'annotation_id': 8163, u'tag_id': 1046, u'entity_type': u'post'}, {u'quote': u'Career guidance and counselling', u'entity_id': 6293, u'annotation_id': 12874, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'the nature of work in care-full societies;', u'entity_id': 6304, u'annotation_id': 12873, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'we are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market;', u'entity_id': 21382, u'annotation_id': 12872, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u"We are a community of freelance developers and other digital professionals who work together online often purely over the internet. We started our project RefugeesWork to help newcomers to connect with locals who are looking for freelancers to outsource some work to them.\n\nIt all started in August 2015 when lots of newcomers, mainly from Syria, arrived to Germany.\n\nIt now turns out that it\u2019s not very easy for them to find any kind of employment at all. German companies seem to not need the skills they bring to the table and even if they do have what they are looking for, they often reject people who do not speak German well.\n\nWe decided to use our digital skills, first of all programming, to help them. We developed a marketplace app where on one side newcomers can register and describe their skills and on the other side local organizations can post their requests for freelancers. We believe work is the best pathway to connect refugees and locals and to date, we have over 300 registrations on the site and big community in Berlin and online. Those Syrians come from all walks of life and some have excellent background, or were running their own business.\n\nBut we also realized that freelance requests are mostly for freelancers with web and mobile development background. These are the jobs freelancers can do online, they don't need to speak the local language and because all the organizations are trying to automate their processes, there is actually a big need for these professions. We checked our database and available statistics and figured out that most of newcomers are young, they just finished their high school or had to leave in the middle of their studies so they actually lack necessary skills to integrate into the highly specialized German job market. Freelancing would give refugees freedom from discrimination they would face otherwise and freelancers are usually paid way better. The tricky part is in making sure there is a regular flow of work. That is our experience.\n\n\nRefugeeswork.jpg960x638 84.1 KB\n\n\nTherefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don\u2019t even know what to do with all the money.\n\nCurrently we are also following the work of Sensorica in Canada and Enspiral in New Zealand. Our wish is to create a micro-holding co-ownership model. One part of the motivation is to shield these professionals from all kinds of discrimination that they might otherwise experience.\n\nIt shields them, for example from the usual politicking among corporate employees who might tend to put such newcomers into a fairly low place. And another part of the motivation is exploring processes and legal ways for cooperation and decision making between many micro-holdings.\n\nWe try to list all our initiatives inside of Github organization SquatUp.\n\nWe try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat.\n\nAll our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us.\n\nIt\u2019s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other.\n\nSo if you are a programmer, \u201dapptivist\u201d, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps.\n\nIf you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time.\n\nAnd last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.\n\nLinks:\n\nRefugeesWork - www.refugeeswork.com\n\nOnline JavaScript school - www.wizardamigos.com\n\nCoding Amigos meetup - www.meetup.com/codingamigos\n\nCoding Amigos collective - www.codingamigos.com\n\nSquatUp - https://github.com/SquatUp/projects/blob/master/README.md\n\nNina Breznik - @ninabreznik\n\nAlexander Praetorius - @serapath", u'entity_id': 769, u'annotation_id': 12871, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u"Panel - 70 minutes - Space for the Future Of Work - How can communities contribute to defining the future of work, July, 5th - 4.50 pm to 6pmSession description here:\xa0\xa0https://ouisharefestparis2017.sched.com/event/B1da/space-for-the-future-of-work-how-can-communities-contribute-to-defining-the-future-of-work.\xa0It's heavily media covered event and unqiue opportunity to get out what we are doing far and wide.\nit would be a good opportunity to present what we are doing in the form of a\xa0succinct booklet to share with participants... I need your help to compile the following information:\n\na short description of the fellowship program experiences so far and \xa0work you guys did at CERN @markomanka \xa0@olivier and @WinniePoncelet @Gehan\nAs well as the program for the event including description of events, tracks and sessions with\xa0high resolution photos of the curators and session leaders\xa0@Noemi and @Owen\nRoadmap for how we are moving forward (REEF, REEFMENA + WB involvement\xa0etc) @Noemi @Matthias @johncoate @Hazem \xa0@ClaireDvn\xa0I think this is a good opportunity to introduce what we are doing over the next couple of months.\n\nDeadline: July 1. Could we dedicate this week's\xa0community call to this @Noemi and @Owen ?", u'entity_id': 20865, u'annotation_id': 8190, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u"Unfortunately I currently do not work, actively looking for a job, I wish I had a project, I have lots of ideas, but I have a problem to realize them, even when I worked whenever I had the initiative, I was told do as the boss says\xa0, (proverb: ties horse as the boss says even if you and the horse die).\n\xa0@Noemi\xa0, yes, you're right, these are the areas that interest me, I\xa0think that we have to actively take part in\xa0solving this\xa0problems, especially young people should engage.\nAbortions\xa0are legal, but there is still a condemnation of women who decide to have an abortion, by doctors, partner, society, which is totally stupid woman's right is to do with her body what she consider is the best.\nVery little is done on education, large number of abortions, legal and illegal, women should be informed that this is not a form of contraception, and that repeated\xa0abortions are harmful to health, the number of adolescent pregnancies is rising.\xa0Awareness and\xa0availability of contraceptives, pills for the day after and abortion with medication, are crucial.\nYou \xa0are well informed, yes\xa0young people were in the streets, dissatisfied with the elections but they got tired and gave up,\xa0it is easier to simply go somewhere abroad, looking for a job, although it is not easy,(\xa0language,habits, traditions, family, friends, problem with visas, work permits.... ) than\xa0to stay and fight,\xa0brain drain is\xa0huge issue.", u'entity_id': 11895, u'annotation_id': 8189, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u"I left Access Space just after we'd delivered an incredibly successful EU funded project: Sheffield Community Network. The project's overarching objective was to create jobs and social enterprises in the Sheffield City Region, and my particular role was to investigate the local employment potential of digital making technologies, give support to local enterprises that were investing in these processes, and help understand what positive local impacts could come out of engagement with 3D Print, Lasercutting, CNC, Digital Embriodery and so on.", u'entity_id': 14151, u'annotation_id': 8188, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u'On a lighter note...', u'entity_id': 13151, u'annotation_id': 8187, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 847, u'annotation_id': 8186, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'This sounds like a brilliant project.\nI really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market.\nMore power to you. I will certainly follow your project very carefully.\n\xa0\nI wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http://empowerhack.io/)', u'entity_id': 9617, u'annotation_id': 8185, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u"It's left me wondering how widely your experience is shared by people in Ireland - to what degree the economic situation over the last decade has eroded people's ability to cope, or woken people up to the need for solidarity and community, or just caused (young) people to leave the country, and how that feels to those who still live there.", u'entity_id': 15313, u'annotation_id': 8184, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 8183, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'I think you would enjoy this @careday-team. I re-read it and thought of your angle, which allows for many explorations left and right:\xa0an article making a case that\xa0most of the work people do is on each other! so care work is just too unseen and mostly in underpriviledged jobs, genders to a minimum. Working classes as care classes, that\'s a strange idea that never occured to me:\nEven in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women\'s work \u2013 looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects \u2013 accounts for a far greater proportion of what working-class people do when they\'re working than hammering, carving, hoisting, or harvesting things.\nThis is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers\xa0recently had to explain\xa0to indignant commuters, "ticket takers" don\'t in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused.\nCaring too much. That\'s the curse of the working classes.', u'entity_id': 24339, u'annotation_id': 8182, u'tag_id': 1047, u'entity_type': u'comment'}, {u'quote': u'Most\xa0projects for refugees\xa0are designed to specifically help the arriving families, children and the single travelling women; but the majority of refugees is barely taken care of in the same\xa0manner: the young men.\xa0It is an illogical equation: The young male refugees are often regarded as healthy and fit,\xa0able to work and therefore are not treated as a priority in terms of care. However; of what\xa0use could these benefits be if there is nothing to do? In Germany, refugees are not allowed\xa0to pick proper work for the first three months of their stay. After that period, a working\xa0permit is needed to apply for a job. The permit, however, is only granted if the person is no\xa0longer living in a refugee camp. Needless to say, the said three months often pass without\xa0anything really happening and three months slowly turn into six months and into a year\xa0- during which there is nothing to do.', u'entity_id': 703, u'annotation_id': 8181, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'After finishing your studies you need to line up behind millions of jobless for a job opportunity. \xa0After investigation ; Many those young people\xa0struggle and move on the street working as a "taxi phone" mobile cheap call, bus driver, gold digger... any available job in general. Some get influenced by easy money called "bizna":\xa0it means selling anything, from a friend or relative, like cell phones, computers, tyres, cars.\xa0Those who have funds to run their business can invest into something short term or permanent like restaurants, jewelry, imports etc.', u'entity_id': 746, u'annotation_id': 8180, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u"Five years into the current crisis, the default future for much of Europe is a world of longer hours and lower wages. Economic regeneration as we have known it could hardly keep up with the social costs of industrial decline, even during periods of sustained growth. That economic collapse can lead into and become entrenched by a collapse of meaning is not just a post-Soviet story, but one that can be traced in many of Europe's former industrial regions, not least the areas of South Yorkshire where I once worked as a journalist.", u'entity_id': 493, u'annotation_id': 8179, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'Those who find it difficult to access the labour market are also likely to find answering these questions more difficult. The stories shared on the Edgeryders platform during 2011-12 illustrate the variety of ways in which young people find their access the labour market limited: not only through unemployment, but underemployment, casualisation and the prevalence of short-term contracts, the increasing cost of education in certain countries, the role of unpaid internships as a path to accessing certain industries. Where skills and qualifications have been acquired through formal education, many find themselves unable to secure work that makes use of these; where skills are acquired informally, the challenge is to represent these effectively to potential employers. Above all, the situation is defined by the interaction between two major processes: a long-term change in the structure of European labour markets, offering new entrants a poorer deal than had been the case for their parents\u2019 generation, has been exacerbated by the effects of the economic crisis that began in 2008.', u'entity_id': 493, u'annotation_id': 8178, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'The point I want to draw from Orlov, however, is that there is a powerful and complex interrelation between how we make a living and how we make sense of our lives. The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?', u'entity_id': 493, u'annotation_id': 8177, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'The spike in mortality that accompanied the fall of the Soviet Union has few parallels in history. Between 1987 and 1994, life expectancy dropped from 70 to 64, and the group whose likelihood of dying increased most sharply was, indeed, working age men. In other words, despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.', u'entity_id': 493, u'annotation_id': 8176, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'We realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative.', u'entity_id': 1710, u'annotation_id': 8175, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'This experience reaffirmed my sense of the power of what people can do when they come together to work on something that matters to them. In particular, talking to those involved, I was struck by how positively many of them experienced using their skills as part of the Feast, when compared to their experience in regular employment. Might it be that work that takes place outside of employment is more likely to be experienced as meaningful? And, if so, why? Several possible answers exist. The psychologist Edward Deci famously demonstrated that\xa0being paid for a task tends to decrease our intrinsic motivation, a phenomenon he explains in terms of the shift of the \u2018locus of motivation\u2019. Meanwhile, as I argued in\xa0\u2018The Future We Deserve\u2019, the logic of maximising productivity has made industrial-era employment an unprecedentedly anti-social form of work. More practically, though, are there ways we can build a better relationship between meaningful work and our ability to pay the rent?', u'entity_id': 493, u'annotation_id': 8167, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'Centers for New Work: During the collapse in employment in the US auto industry in the early 1980s, the philosopher Frithjof Bergmann worked with employers, unions and community organisations in Flint, Michigan to create the\xa0Center for New Work. \u2018We are in the beginning of a great scarcity of jobs,\u2019\xa0Bergmann argued, \u2018but not of work.\u2019 Instead of making redundancies, he proposed that employers share out the remaining jobs on a rotating work schedule. Workers would alternate between extended periods in traditional industrial work and similar periods pursuing \u2018New Work\u2019. The latter included local production to meet practical needs, but also the right of everyone to spend a significant amount of their time pursuing a personally meaningful project.', u'entity_id': 493, u'annotation_id': 8166, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'I suggest that we look for two stages in projects that might constitute effective action on the level of meaning: first, the ability to substitute for employment in providing social identity and a sense of direction; and, second, the potential for this to lead to new means of meeting practical needs.', u'entity_id': 493, u'annotation_id': 8165, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'he stories shared on the Edgeryders platform during 2011-12 illustrate the variety of ways in which young people find their access the labour market limited: not only through unemployment, but underemployment, casualisation and the prevalence of short-term contracts, the increasing cost of education in certain countries, the role of unpaid internships as a path to accessing certain industries. Where skills and qualifications have been acquired through formal education, many find themselves unable to secure work that makes use of these; where skills are acquired informally, the challenge is to represent these effectively to potential employers. Above all, the situation is defined by the interaction between two major processes: a long-term change in the structure of European labour markets, offering new entrants a poorer deal than had been the case for their parents\u2019 generation, has been exacerbated by the effects of the economic crisis that began in 2008.', u'entity_id': 493, u'annotation_id': 8164, u'tag_id': 1047, u'entity_type': u'post'}, {u'quote': u'There are not many fablabs, makerspaces or \u2018protofablabs\u2019 in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.', u'entity_id': 37182, u'annotation_id': 11788, u'tag_id': 1059, u'entity_type': u'post'}, {u'quote': u"I've been to a few city organised or backed 'workshops' meant to shape the future of the city. The workshops\xa0all lack\xa0the same: citizens present. Generally, they\xa0are organised during working hours and the only participants are civil servants and companies/entrepreneurs that have an economic\xa0stake in the issue. The details of how these workshops go, are pathetic. And it's packaged and sold to the citizens as 'co-creation'. Last one was most striking. A workshop on urban planning,\xa0commissioned by the city and organised by the same organisations that were involved in an ongoing massive real estate scandal. The workshop itself featured only entrepreneurs and project developers, talking about matters that affect everyone.\xa0Already at this basic level, the city fails. How can anything good come from such a basis?", u'entity_id': 28966, u'annotation_id': 8217, u'tag_id': 1059, u'entity_type': u'comment'}, {u'quote': u'There are not many fablabs, makerspaces or \u2018protofablabs\u2019 in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.', u'entity_id': 37182, u'annotation_id': 11816, u'tag_id': 1930, u'entity_type': u'post'}, {u'quote': u'In my context, international partnership is very helpful, because our Government doesn\u2019t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner\u2026like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don\u2019t know our realities. They don\u2019t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.', u'entity_id': 37591, u'annotation_id': 11815, u'tag_id': 1930, u'entity_type': u'comment'}, {u'quote': u"Interesting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is.\xa0The impossibility\xa0seems to be\xa0in our inability to provide deeper care when people fall through the cracks -\xa0if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her/himself. \xa0I see people coping at most, because there is no real\xa0choice and assessment of the situation outside constraints.", u'entity_id': 21658, u'annotation_id': 8192, u'tag_id': 1048, u'entity_type': u'comment'}, {u'quote': u'How many people need care and are not getting it?', u'entity_id': 10261, u'annotation_id': 8191, u'tag_id': 1048, u'entity_type': u'comment'}, {u'quote': u'Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.', u'entity_id': 550, u'annotation_id': 8195, u'tag_id': 1049, u'entity_type': u'post'}, {u'quote': u'@Noemi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way. But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could\xa0 make a general call and most of the NGO\'s worked separately. We \'ve tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.\xa0\nAt the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I \'m trying to solve the problem with an idea called "smart boxes" (difficult to explain at the moment). I don\' t know if there\'s something out there that can help. This is why I\'m here...', u'entity_id': 17482, u'annotation_id': 8194, u'tag_id': 1049, u'entity_type': u'comment'}, {u'quote': u'What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.', u'entity_id': 19161, u'annotation_id': 8198, u'tag_id': 1050, u'entity_type': u'comment'}, {u'quote': u"I was also asked to try and help to find physiotherapists and patients who'd like to volunteer their time to work on their research", u'entity_id': 27806, u'annotation_id': 8197, u'tag_id': 1050, u'entity_type': u'comment'}, {u'quote': u'we really need some clinical peopl', u'entity_id': 16892, u'annotation_id': 8196, u'tag_id': 1050, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22106, u'annotation_id': 8199, u'tag_id': 1051, u'entity_type': u'comment'}, {u'quote': u'Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.', u'entity_id': 550, u'annotation_id': 8201, u'tag_id': 1052, u'entity_type': u'post'}, {u'quote': u'Most people cannot perform basic first aid or use simple techniques for health. \xa0Many communities lack any cognizance or skill to handle the inevitable emotional collapse of our comrades.', u'entity_id': 521, u'annotation_id': 8200, u'tag_id': 1052, u'entity_type': u'post'}, {u'quote': u"Good point on the organizations @Noemi.\xa0I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there.\xa0Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It's clear that they don't have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?", u'entity_id': 11841, u'annotation_id': 8203, u'tag_id': 1053, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22106, u'annotation_id': 8202, u'tag_id': 1053, u'entity_type': u'comment'}, {u'quote': u'The transition to such a system is not without obstacles, especially by virtue of the lack of political sense in the crisis-stricken country that is experiencing the deepest recession since World War II. Nevertheless, after\xa07 years of fighting the crisis, some cells inside the society start having a very clear idea about the pathway forward.', u'entity_id': 736, u'annotation_id': 8204, u'tag_id': 1054, u'entity_type': u'post'}, {u'quote': u'No comprehensive empirical study has been conducted at present to determine the incidence and prevalence of disabilities in Bangladesh. The few studies that have been conducted reflect a medical rather than a social model of disability, and they are also limited in geographical coverage', u'entity_id': 840, u'annotation_id': 8206, u'tag_id': 1055, u'entity_type': u'post'}, {u'quote': u"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !?\nOnce I searched medline (a database of scientific publications) \xa0to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' .\nCan it really be that there is a enormous hole in healthcare research here?\nCould it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?", u'entity_id': 24439, u'annotation_id': 8205, u'tag_id': 1055, u'entity_type': u'comment'}, {u'quote': u'Thanks so much for the beautiful description. \xa0This is a conversation we\'ve been recently having at Woodbine. \xa0@yannick i think it is really important how you combine the idea of space with the idea of care. \xa0Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself. \xa0Then with the ever increasing rent, you become more and more attached to "work" or the struggle to compile a bunch of part time jobs together. \xa0Hence the ubiquitious greeting in the city is the "I\'m so busy, just really busy" idea, that once said is usually completely understood to be a chronic state. \xa0But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments. \xa0To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city. \xa0Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other. \xa0In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven\'t felt in the city. \xa0As one of our comrades said, "we left the capital of the world, and in this little town, our world just got so much bigger." \xa0\nExcited to continue this conversation and see the work you all are doing! \xa0Be well.', u'entity_id': 27815, u'annotation_id': 8208, u'tag_id': 1056, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 8207, u'tag_id': 1056, u'entity_type': u'post'}, {u'quote': u'In my community, I conducted some project to give better life to people by hearing their needs and build solutions together. Like safe water to drink as I did in my village several years ago. I am not supported even by the state or by the rural council. If the pump is broken or whatever, I pay money to keep it going. I cannot ask villagers for money because they don\u2019t have it.', u'entity_id': 37182, u'annotation_id': 11791, u'tag_id': 1057, u'entity_type': u'post'}, {u'quote': u'thanks for your support. To your questions Alex: Yes they are allowed to leave the camp. Its kind of hard for them to bring\xa0friends inside who dont live there though (pretty weird feeling because it was so easy for us to enter)\xa0\nWe actually had a little experiment today and brought materials like duckt tape, cable ties, strings, cardboard (materials that you dont necessarily need proffessional tools for) to one room to see what would happen. Just after a little time os insecurity they started finding solutions in terms of "unpacking". That seems to be the biggest issue.. The room is a organised mess and they wanted to have items to put their stuff in. It was a really cool experience to see how everyone together was solving problems. In the end we had two really nice shelf constructions!\nThere is a lot of unused material inside the camp, that\xa0is going to be thrown away.. if there would be better communication between the organisation and the refugees they could probably use these too.. (to be fair: the Malteser who are running the camp are already having kind of good communication.. so far we only good positive feedback and lots of permissions!)\xa0\nBut i really like the idea of going out of the camp to get materials,\xa0also because in the end its about not only having the courage to hack the "comfort zone" but to feel able and free in the "outside world" (that is really a feeling of home)', u'entity_id': 21277, u'annotation_id': 8215, u'tag_id': 1057, u'entity_type': u'comment'}, {u'quote': u'There was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore.\xa0What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?', u'entity_id': 681, u'annotation_id': 8214, u'tag_id': 1057, u'entity_type': u'post'}, {u'quote': u"For many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country.\nSo when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was.\nDuring my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was \u201clucky\u201d: only had to buy once dexamethason\xa0for myself, but they were not so lucky:\xa0 either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with \u201dthe dossier\u201d), either they had to figure out how to obtain certain medication themselves.\nBut two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment\xa0 reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn\u2019t.", u'entity_id': 517, u'annotation_id': 8213, u'tag_id': 1057, u'entity_type': u'post'}, {u'quote': u"Hi @Aravella, \xa0Alternative school is never been taken before. \xa0The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again. \xa0Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime. \xa0Communal Library is rare, there are old books since 70's to 90's sometime \xa0no book but lot of dust and ruins.", u'entity_id': 11993, u'annotation_id': 8212, u'tag_id': 1057, u'entity_type': u'comment'}, {u'quote': u"we don't have the infrastructure to develop such aid", u'entity_id': 29958, u'annotation_id': 8211, u'tag_id': 1057, u'entity_type': u'comment'}, {u'quote': u'You could host a RC and perhaps keep some of the pieces for parts and training. Of course you can also encourage people to donate some semi-working things or decent enough tools (no one should work with shit tools!)', u'entity_id': 23333, u'annotation_id': 8210, u'tag_id': 1057, u'entity_type': u'comment'}, {u'quote': u'With the creative potential, the only problem lies in the lack of tools and materials.', u'entity_id': 703, u'annotation_id': 8209, u'tag_id': 1057, u'entity_type': u'post'}, {u'quote': u"Thanks, we've had some struggles such as low volunteer numbers and consistancy of volunteers. Still haven't cracked that. I think there's potential for job creation as we outlined here and here in our visioning document, and submitted to Galway City Council, as they invited submissions from community groups for policy suggestions (particularly Policy 5.). Gaining employment doing something I enjoy, that also benefits my community was a driving force for at the start. There doesn't appear to be real jobs materialising in this area in Galway, so I'm staring to shift my gaze a little.\nPlenty of successes there though; learning, eating, conversation, connections and engagement with school activities. This year the focus is on getting more involvement from parents of the school kids and people in the neighbouring houses.\nStamina comes from following a common sense approach to resilience. Food is a base need, and the process of growing it benefits health, community, physical environment and financially it helps a little to get veg every now and again for our efforts. I can't imagine not growing some food every year. It feels like the most rational thing I do with my time.", u'entity_id': 20731, u'annotation_id': 8216, u'tag_id': 1058, u'entity_type': u'comment'}, {u'quote': u'"Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water." \u2013 To the point. Religious and cultural affiliation is often simply a lobbying / collective action tool for mundane interests.', u'entity_id': 9973, u'annotation_id': 8220, u'tag_id': 1060, u'entity_type': u'comment'}, {u'quote': u'If we are to achieve peace at home, we need to think about how we tackle legacy injustices against people in different parts of a globalised world. The central pillar is property law and ownership. As Ethiopians learned, it makes sense to start there and not let up till an acceptable solution is reached.', u'entity_id': 4134, u'annotation_id': 8219, u'tag_id': 1060, u'entity_type': u'post'}, {u'quote': u"Rwanda is one of the most densely populated countries in Africa and the pressure on land has often been put forward as an important factor in the 1994 genocide. I cannot remember where I heard that in the case of Rwanda there were more intra-ethnic murders than between different ethnic groups... the genocide was partially fueled by the need to free up resources. If memory serves me, they had a system ( currently being reformed) in which all land would be passed on to the first son. Which left a class of landless, disenfranchised young men with no hope of accessing a brighter economic future unless some of that land could be freed up...\nIsrael and Palestine is another example. At the source of this conflict, according to Bo Rothstein, lies mixing of religious rhetoric with what is essentially a fight over assets. He claims that you would create the foundation for lasting peace by focusing on resolving the land/economic disputes with compromises for everyone (Swedish article): http://www.svd.se/\u2026/markavtal-kan-stoppa-valdet_3777014\nOther examples of legacy injustice include (thanks @Jaycousins ):\n\nEgypt - land is divided amongst all children so within a couple of generations everyone has a tiny patch they can't profit from - the result is illegally constructed tower blocks on most of the rare and fertile land in Egypt and a lot of in-family tensions. \nLikewise In England or any other Western Country, the peasantry had their inheritance stolen out from under them long before the lords and merchants started robbing foreign soil. \n\u2026 There is much to be learned from Ethiopian history about the importance of tackling inequalities in distribution of property and use rights for building lasting peace. Especially in societies where formal property laws and customary property rights arrangements exist in parallel. I believe some of those lessons are also relevant in societies where land rights are secure but ownership of property is highly concentrated.", u'entity_id': 4134, u'annotation_id': 8218, u'tag_id': 1060, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 504, u'annotation_id': 8221, u'tag_id': 1061, u'entity_type': u'post'}, {u'quote': u'More participants = more results', u'entity_id': 720, u'annotation_id': 8224, u'tag_id': 1063, u'entity_type': u'post'}, {u'quote': u"In my view, there's two clear levels to this: local collaboration and international collaboration. Both are interesting to research seperately, and the combination even more so.\xa0For good measure, local research groups participating in this are (or should be)\xa0inevitably autonomous in practical aspects. Save the occasional shipping of a sample to replicate experiments\xa0or other small stuff like that. This entails that the local element\xa0will have coordination costs in the form of time, money\xa0and energy\xa0to\xa0keep\xa0the community and project going through a potentially long and tough research track.", u'entity_id': 25366, u'annotation_id': 8223, u'tag_id': 1062, u'entity_type': u'comment'}, {u'quote': u"Part of the issue is funding. Larger premises or chains do lead to economies of scale and can help with staffing (whereas a single, small institution may need to resort to agency staff on occasion - which can be very expensive). The other side of this is that large operators can seem\xa0to get away with things that a small or single premises operator would not, simply as to rebuke them or suspend their activities would result in chaos for service users, never mind the relationships that develop with a large care provider and a local council or\xa0clinical commissioning group. (I've seen examples of large corporates who provide home care services being inspected and noises being made by staff who complain they are not alloted time to travel between appointments, etc., yet nothing seems to be done, despite the obvious failings.", u'entity_id': 27817, u'annotation_id': 8222, u'tag_id': 1062, u'entity_type': u'comment'}, {u'quote': u'Another issue mentioned is the fact that people are often going in to care homes later in life, and when they need more care. (It\'s mentioned that residents used to arrive driving themselves to a\xa0residential care home!) It does seem the last resort now, with people hanging on as long as possible in their own homes, even if that means being on their own and struggling with shopping, cooking, etc.; less onus seems to be placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the "invisibility" of the elderly, our fear of aging and death nowadays,\xa0marketing, the cult of the self and independence, or somesuch?', u'entity_id': 29077, u'annotation_id': 8225, u'tag_id': 1064, u'entity_type': u'comment'}, {u'quote': u'Hi\xa0@ybe, Have you considered providing trauma healing for cops? They are the ones who inflict much of the trauma in my area and they could use a big dose of emotional\xa0processing!', u'entity_id': 29075, u'annotation_id': 8226, u'tag_id': 1065, u'entity_type': u'comment'}, {u'quote': u'A\xa0final point: a flat organisation has leaders of its own, even informal\xa0- I can\'t imagine not having leaders, even multiple ones,\xa0giving direction to the org.\xa0Don\'t you have them in your large group Yannick?\xa0Falkwinge,\xa0who wrote about making great ideas happen with many people contributing, was saying that managing\xa0day to day operations require\xa0"one portion classic\xa0project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm\u2019s goals, culture, and values as it grows." OK, his Pirate Party\xa0was\xa0a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills\xa0distrbuted within the leadership may help the general organisation and support others to fall into specific roles..', u'entity_id': 15147, u'annotation_id': 8233, u'tag_id': 1067, u'entity_type': u'comment'}, {u'quote': u'I am a co-founder of Cos\xe1in. A wellness centre based in the city. Cos\xe1in supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cos\xe1in is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering:', u'entity_id': 562, u'annotation_id': 8232, u'tag_id': 1067, u'entity_type': u'post'}, {u'quote': u"I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here's where the course is being shaped, feel free to jump right in:\xa0https://edgeryders.eu/en/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course", u'entity_id': 16967, u'annotation_id': 8235, u'tag_id': 1068, u'entity_type': u'comment'}, {u'quote': u'I believe there is much to learn from the whole lean startup philosophy for people that want to change the way our world is driven. This is why we were organizing workshops on lean startup and collaborative business modeling (as the one organized in Stockholm). However, there are also limits of the lean startup principles. For example with Babele, we received the true validation of the concept only in October 2014, so 1 year and 2 months after having launched the platform. And we started selling services with the platform only in February 2015 (so 1 year and almost 6 months after). It takes a lot of patience in building professional products and services, and sometimes the lean startup philosophy invites people to give up too soon because they were not able to receive proper validation soon enough...', u'entity_id': 16291, u'annotation_id': 8234, u'tag_id': 1068, u'entity_type': u'comment'}, {u'quote': u"What I make of this is that it's not about choosing between the open source or current proprietary\xa0code/technology approach. It's clear to me that both do things well and other things wrong\xa0and that an ideal situation lies somewhere in between.\n\nI find it\xa0is recurring when the open tech/science ideas meet\xa0traditional ideas that the discussion is seldom held around the question: how can the different approaches\xa0learn from each other, in order to implement a better solution?\xa0Rather, it is usually about what approach is the best as is.\xa0Result:\xa0boring discussion and no real progress.\n\nHow can we get to a situation where this conversation is not about an ideal solution, but about\xa0finding an ideal solution?\n\nPing @Alberto\n\n@Eireann_Leverett\n\n@trythis\n\n@Rune", u'entity_id': 27802, u'annotation_id': 12875, u'tag_id': 1069, u'entity_type': u'comment'}, {u'quote': u'In order to continue, we really need to find people with more knowledge, have a better view of the possibilities. We can use the hackathon in Amsterdam for this. There will be many experts present, as well as the chips of Digi.bio. We can try to do some of the experiments we will do with the plasmids, on the chips. Designing or working on the chip itself however, is not the goal or something we have the right skills for.', u'entity_id': 7979, u'annotation_id': 8236, u'tag_id': 1069, u'entity_type': u'comment'}, {u'quote': u'And is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.', u'entity_id': 24534, u'annotation_id': 8237, u'tag_id': 1070, u'entity_type': u'comment'}, {u'quote': u'\xabFuture Tools\xbb is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood\u2019s daily activities and funnel the parents\u2019 interest in social promotion for their kids towards a more inclusive society.', u'entity_id': 796, u'annotation_id': 8238, u'tag_id': 1071, u'entity_type': u'post'}, {u'quote': u"A Recollection- I asked a few questions and this was the result of our conversation.\n\n\u201cAfter meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer\u201d.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers\u201d.\n\nWe both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began\u201d.\n\nWhat prompted the action?  \u201cWe wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else.  We all could learn from one another.  So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other\u201d. \n\nWhat is the mission of CoreCareCollective? \u201cOur mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person\u2019s cancer fight: the survivors, fighters, supporters, and caregivers\u201d. \n\n\u201cEvery person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey\u201d. \n\nI had asked who else would be in collaboration, this was her response, and \u201cThe platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system\u201d.  \n\nWho do you want to reach? \u201cPeople around the world that want to share their experiences and sharing their strength\u201d. \n\nDenise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more.\n\nIt is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare.\n\nI should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.", u'entity_id': 35903, u'annotation_id': 11597, u'tag_id': 1072, u'entity_type': u'post'}, {u'quote': u'New Learning\n\n Creating Creative Learning (Spaces)', u'entity_id': 765, u'annotation_id': 8239, u'tag_id': 1072, u'entity_type': u'post'}, {u'quote': u'proceedural documents', u'entity_id': 39331, u'annotation_id': 11662, u'tag_id': 1073, u'entity_type': u'comment'}, {u'quote': u'As an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I\u2019ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970\u2019ies anymore. In the name of assuring \u2018quality\u2019, \u2018safety\u2019 etc, \xa0we need to manufacture, CE mark, register as a medical device and so on!. \xa0To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price. \xa0Why should people, already challenged economically by loss of health, spend 5-10 k\u20ac \xa0for a device that could be made much cheaper?', u'entity_id': 516, u'annotation_id': 8245, u'tag_id': 1073, u'entity_type': u'post'}, {u'quote': u'Drained both mentally and financially, I moved to Vienna, became self employed, paid a high tax on healthcare, tried Rituximab with very little success, worked throughout my illness and also got a splenectomy when a terrible\xa0 relapse made it clear there is no other way out of this. A few months after, I read an article on a website: How I became a member in the cytostatic network. There were many similarities with my struggle: people not having access to medication as cheap as dexamethason, a description of the oldest Pharmacy in Vienna, which I knew so well, and most of all, the solidarity.\xa0\n\nA few weeks later though, I joined the network of Cytostatics.\xa0 I was going home for a concert and my good friend Simona Tache shared a status form a Youngman\xa0who asked if someone is going to Bucharest from Vienna. I knew exactly what it was about, the dots were easy to connect.\nI met Vlad Voiculescu that evening, and the next day I followed the instructions and took the\xa0 transport to Bucharest. Basically, transportation worked like this: You take the medicines in a thermal bag, put it in the fridge and take them out only when you leave the house for the airport. At the security, you take it out and tell the officers you have sensitive medicine there. Sometime they ask you who is it for, sometimes they don\u2019t. You are only allowed to have it for your self or\xa0 your family. For me, anyone suffering in Romania is family\u2026.so it never felt like lying.\nIn Bucharest, you had Valeriu waiting for you at the airport, or you met him later in the day. Valeriu is a taxi driver who delivers the cytostatics to the Pavel Association \u2013 a NGO working for the children in Fundeni, or directly to the ones in need, sick people or caregivers. The news about the Network circulated by word of mouth. Some people knew about its existence, some didn\u2019t. The only thing they knew is that there is someone in Vienna who buys medicines if you give him the prescription and that you can pay him when you can. There was no financial gain, on the contrary. Vlad would receive the prescriptions, buy the cytostatics out of his own pocket and then got the money later. Or much later. No deadlines, no pressure. Just the will to help.', u'entity_id': 517, u'annotation_id': 8244, u'tag_id': 1073, u'entity_type': u'post'}, {u'quote': u'This article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.\xa0\n\xa0\n"Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies.\nWhen asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.\xa0\n\u201cWhat I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,\u201d says Aiken. \u201cI think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.\u201d', u'entity_id': 26054, u'annotation_id': 8243, u'tag_id': 1073, u'entity_type': u'comment'}, {u'quote': u'Table of contents\n\nLegal tactics\nLogic of this document\n\nLegal tactics\nDon\'t incorporate\nIf you are not a legal entity, you are obviously exempt from any authorization regime, bureaucracy requirements etc. Your scope for action is limited only by the freedom of individuals in your legal system.\xa0\nOn the downside, unincorporated initiatives cannot easily use some of the services that legal entity can. They canot hold a bank account, sign a contract, rent an office etc. They rely heavily on the good will of the people who believe in them to maintain coherence, even \xa0more so than incorporated ones.\xa0\nThe Helliniko Community Clinic is an example of a very effective care initiative that has decided not to incorporate.\n"Squat, then negotiate"\nMany care projects need physical spaces, but buildings have an especially top-heavy regulatory regime in many countries. Rather than ask for authorizations, some groups find it easier to start \xa0by illegally squatting their building of choice, then negotiating with the owner. The act of squatting creates a problem for the owner; an agreement with the squatters can be presented as the solution.\xa0\nBelgium (and maybe other countries too?)\xa0has a legally attenuated contractual form for people and organisations to temporarily occupy buildings. One of its advantages: industrial spaces or office buildings can be temporarily repurposed as living quarters. Loic is an expert in this area \u2013 see here.\nLogic of this document\nStarting with a phrase from woodbine-health-autonomy-center\xa0\xa0\n\u201cThis practice may involve working outside the structure of licenses, certifications and insurance. \u201c \nTo my understanding of OpenCare, then this is the very essence. Breaking out of \u2018failed institutions\u2019 https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship\xa0while staying clear of trouble.\nAs @markomanka remind us: \xa0...it will break.., but let\'s skip the simple logical stuff to which we all agree (Being ethical correct, Good Clinical Practice, Protect privacy, Helsinki declaration, Risk assessment\u2026) and make some foothpaths in the illogical legal jungle, mapping the traps and dangerous animals. Let\u2019s also stick to EU continent of bureaucratic beasts.\nTherefore\xa0this\xa0proposal of creating a\xa0living document to collect knowledge, references and safe practice\n(My initial title suggestion:) OpenCare Legal Evasion Guide or How to keep clear of lawsuits\nThere is a start\xa0in the 100$ overview https://docs.google.com/document/d/1NKc2bM1FnpQ9zCEveieFr7bIGA9JkI8U_adsBpyma1A/edit#heading=h.5obrk7n45hk3 but I think it would be better with a dedicated collaborative document.\nDraft for a table of content:\n* How to get around ensurance of responsibility etc..\n* Can you reproduce a patent for non profit or private use? How do you work with or around licensures/certifications to provide safe care? (from :https://edgeryders.eu/en/woodbine-health-autonomy-center)\n*\xa0How do you interact with existing structures?', u'entity_id': 5913, u'annotation_id': 8242, u'tag_id': 1073, u'entity_type': u'post'}, {u'quote': u"Perhaps the idea of sub-optimality in the system comes back to a\xa0wider\xa0idea. One that is floating around in other areas of the site, that of 'unlicensed behavior'. Once\xa0an organisation or NGO becomes 'legitimate',\xa0it tends to deal\xa0with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly).\xa0It becomes more constrained to\xa0do\xa0things 'the correct\xa0way' and less able to focus\xa0on doing what is required.", u'entity_id': 19227, u'annotation_id': 8241, u'tag_id': 1073, u'entity_type': u'comment'}, {u'quote': u'Now, if you, say, make a survey of what colour of wheelchar is preferred, you need permissions from ethic comittee, legal paperwork etc, = >2k\u20ac and\xa0>2-3 months delay', u'entity_id': 21631, u'annotation_id': 8240, u'tag_id': 1073, u'entity_type': u'comment'}, {u'quote': u'Kitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like\xa0electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their "guests" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.\xa0\n\n@Alex_Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !', u'entity_id': 16177, u'annotation_id': 12881, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production.', u'entity_id': 38856, u'annotation_id': 11866, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u"I think an important question raised was 'is the legal side preventing this from happening more? Or will it get in our way?'", u'entity_id': 10261, u'annotation_id': 8246, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"Maybe hackers are put off operating on people cos they might get sued if it goes wrong? Or 'pretending' to be a dentist is illegal and only people with official training should be allowed to mess with teeth?", u'entity_id': 10261, u'annotation_id': 8247, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'(Issues with stuff like law getting in the way of common sense hacking with pacemakers cos of stupid patent laws / lack of open software ?)', u'entity_id': 10261, u'annotation_id': 8248, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Nadia said we can find people with expert legal knowledge, and see what the situation is.', u'entity_id': 10261, u'annotation_id': 8249, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8256, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8257, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 20113, u'annotation_id': 8258, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"Sometimes the pressure comes from the armed police that surround the camp. At every entrance a bus full of armed police waits. They stop all vehicles going on to the camp. Sometimes they're friendly, sometimes officious, always confrontational. When there are problems on the camp or the nearby Motorway they respond with CS gas canisters. They fire them at will over the whole camp. Dispersing refugees into shelters. The canisters overheat when they let the gas out, this causes fires in the camp. Often the police target refugee communal areas like restaurants and shops. They try to use the gas to burn them down. I will never forget walking through the camp, under a thick fog of CS gas, my throat raw, shielding my watering eyes from the gas with a scarf.", u'entity_id': 536, u'annotation_id': 8259, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 8260, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'We had to come by with a legal framework to a situation unknown by Italian law (we had to govern it in the traditional way). The paid professional legal \u201cadministrator\u201d has changed three times\u2026 It is hard for them to deal with a real counterpart with proposals and ideas for innovation.', u'entity_id': 743, u'annotation_id': 8261, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Another interesting data point you have found is about licensing and regulation. Is two months a long time to get a license in the UK? If so, what do you think is going on, and how could it be fixed?', u'entity_id': 8207, u'annotation_id': 8262, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'hat should be a simple request for licensing, and given that the licence terms for this district are insanely onerous, I', u'entity_id': 671, u'annotation_id': 8263, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'. Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.\n US ALL for electing the people continuing this process of alienation of the patient and healthcare providers.', u'entity_id': 11945, u'annotation_id': 8264, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"2 months is an extremely long time (2 weeks would be more usual). I won't bore you with the details, but essentially, acupuncturists are licensed at the local level in the UK alongside tattooists and body piercers (which have far greater risks of injury, blood-borne contamination, etc, and are, clearly, not any kind of healthcare) - and are thus entirely at the mercy of whatever inappropriate regulations the district council chooses to impose.", u'entity_id': 15329, u'annotation_id': 8265, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"Hi @steelweaver, Just to thank you for the contribution and to say I'm intrigued by what it means that you're operating while waiting for a license, is it dangerous or do you risk anything? Or is it more a matter of time.. and you will get it anyway, be in the books etc? Ever since we heard about the volunteers led clinic in suburban Athens and the potentially many similar ones, it makes you wonder what it is about these grey areas in between formality and informality. Maybe involving people who are not health professionals in the system definition is a requisite for the kind of services you mention - precisely because the ones from the system are too trapped in it to get out alone.", u'entity_id': 18017, u'annotation_id': 8266, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'I am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (or at least it was desirable before networked reputation economies became a possibility - who knows what alternative models might be possible now?).', u'entity_id': 18202, u'annotation_id': 8267, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"@markomanka maybe has more interesting insights as to minium criteria which can\xa0make\xa0health services like these legit from system's perspective.", u'entity_id': 18617, u'annotation_id': 8268, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'But Noemi is proposing regulation as some kind of shelter for these initiatives. Would this work? To a first approximation, I am doubtful. Uber has access to legal advice, and they undoubtedly ran checks on their model before going live. But then they get sued. The sueing party claims that something in that model should be interpreted like something else already in the legal system. For example "an Uber driver is like the employee of a taxi company" or "if you rent out your spare room on Airbnb you become a hotel". If it wins the case (as it tends to do), then the sentence becomes a precedent. European version: lobbyists get the law change the way they want it. So, these innovative, disintermediating solutions start off as legal, but then they are made illegal as they begin scaling.', u'entity_id': 19025, u'annotation_id': 8269, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Now, if you, say, make a survey of what colour of wheelchar is preferred, you need permissions from ethic comittee, legal paperwork etc, = >2k\u20ac and\xa0>2-3 months delay', u'entity_id': 21631, u'annotation_id': 8270, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'his practice may involve working outside the structure of licenses, certifications and insurance.', u'entity_id': 521, u'annotation_id': 8271, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Registrations/certifications/licensing are in place as fences, one of the tools in the arsenal of safety in healthcare.', u'entity_id': 8137, u'annotation_id': 8272, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"Systems of fences (certification/licenses/etc) are not always an innovator's enemy. Dealing with responsibility is a lot easier (and often, paradoxically cheaper in the long run) than dealing with accountability.", u'entity_id': 15136, u'annotation_id': 8273, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Why struggle with licenses and regulatory hurdles?', u'entity_id': 20474, u'annotation_id': 8274, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'How do you work with or around licensures/certifications to provide safe care?" perhaps @steelweaver and his\xa0experience can help.\xa0He is\xa0in the process of setting up an acupuncture\xa0clinic at the edge of (commercial) regulations.', u'entity_id': 24022, u'annotation_id': 8275, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Don\'t incorporate\nIf you are not a legal entity, you are obviously exempt from any authorization regime, bureaucracy requirements etc. Your scope for action is limited only by the freedom of individuals in your legal system.\xa0\nOn the downside, unincorporated initiatives cannot easily use some of the services that legal entity can. They canot hold a bank account, sign a contract, rent an office etc. They rely heavily on the good will of the people who believe in them to maintain coherence, even \xa0more so than incorporated ones.\xa0\nThe Helliniko Community Clinic is an example of a very effective care initiative that has decided not to incorporate.\n"Squat, then negotiate"\nMany care projects need physical spaces, but buildings have an especially top-heavy regulatory regime in many countries. Rather than ask for authorizations, some groups find it easier to start \xa0by illegally squatting their building of choice, then negotiating with the owner. The act of squatting creates a problem for the owner; an agreement with the squatters can be presented as the solution.\xa0\nBelgium (and maybe other countries too?)\xa0has a legally attenuated contractual form for people and organisations to temporarily occupy buildings. One of its advantages: industrial spaces or office buildings can be temporarily repurposed as living quarters. Loic is an expert in this area \u2013 see here.\nLogic of this document\nStarting with a phrase from woodbine-health-autonomy-center\xa0\xa0\n\u201cThis practice may involve working outside the structure of licenses, certifications and insurance. \u201c \nTo my understanding of OpenCare, then this is the very essence. Breaking out of \u2018failed institutions\u2019 https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship\xa0while staying clear of trouble.\nAs @markomanka remind us: \xa0...it will break.., but let\'s skip the simple logical stuff to which we all agree (Being ethical correct, Good Clinical Practice, Protect privacy, Helsinki declaration, Risk assessment\u2026) and make some foothpaths in the illogical legal jungle, mapping the traps and dangerous animals. Let\u2019s also stick to EU continent of bureaucratic beasts.\nTherefore\xa0this\xa0proposal of creating a\xa0living document to collect knowledge, references and safe practice\n(My initial title suggestion:) OpenCare Legal Evasion Guide or How to keep clear of lawsuits\nThere is a start\xa0in the 100$ overview https://docs.google.com/document/d/1NKc2bM1FnpQ9zCEveieFr7bIGA9JkI8U_adsBpyma1A/edit#heading=h.5obrk7n45hk3 but I think it would be better with a dedicated collaborative document.\nDraft for a table of content:\n* How to get around ensurance of responsibility etc..\n* Can you reproduce a patent for non profit or private use? How do you work with or around licensures/certifications to provide safe care? (from :https://edgeryders.eu/en/woodbine-health-autonomy-center)\n*\xa0How do you interact with existing structures?', u'entity_id': 5913, u'annotation_id': 8276, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'We are beginning to experiment with providing care outside of the realm of state control. This practice may involve working outside the structure of licenses, certifications and insurance. Our intention is always to heal, and so we are finding ways to do this that protects providers and patients.', u'entity_id': 5886, u'annotation_id': 8277, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'"Podziemne Pa\u0144stwo Kobiet" is both a documentary and a collection of abortion stories from Polish women who had illegal abortions in the past two decades. Poland most likely is the only country in the world that had abortions legal by law (1956-1993) and changed it "backward".\xa0We ended up having one of the most restrictive laws in the world, and the legislators were smart, by\xa0avoiding criminalizing women (with whom society would sympathize) and focusing instead on everyone else who assists with abortions (the penalties are up to 8 years in prison), creating a system of fear and paranoia.\xa0\nThe first thing that strikes\xa0about abortion in Poland is the statistics - according to Polish Ministry of Health in 2013, there were 744 legal abortions and 718 of them due to the risk of birth defects. 3 of them due to rape and 23 due to the risk posed to women health. In 2015 there were 1044 legal abortions. For a country with 38 million inhabitants, these numbers seem just wrong. In Spain or UK, these numbers are 200 or 400 times higher. And it\'s estimated that illegal abortions every year account for between 80.000- 200.000 cases in Poland.\xa0\nSo, what kind of abortions are available in the underground and how do women access it?\nChirurgical abortions are one of the common ways. They\xa0usually happen in\xa0hidden spaces, often barely up to any standards, with basic equipment, sometimes only in the presence of doctor (women who come to get the abortion might end up assisting them). The price of an abortion is at least\xa02000 zl (500 euros), and it tends to go up with the standard. In some cases, when doctors are well connected, they can even perform them in hospitals, which would double the price. Many doctors who refused to perform a legal abortion are perfectly fine with doing it illegally after settling the price with their patients.\xa0\nConsidering that the minimal wage in Poland is 1850 zl, and the average is 4000 (yet many people struggle to get contracts, work on 3/4 of full time, or often work on irregular gigs earning even less than 1000 z\u0142 a month with no minimal wage per hour), the price is quite prohibitive and exclusive. Many women end up taking\xa0loans to pay off their abortions.\xa0\nNowadays, women contact pro-choice organizations to find out\xa0who can help them with abortion. Since the 90ties, press and internet advertisements were the ways to find\xa0doctors who\'d perform them. Such services would be named as "painless restoration of menstruation"\xa0- and involve either chirurgical help or access to drugs, highly overpriced. In many cases a friend or a relative knows who does it in your town. The fear and paranoia remain anyhow - women are asked to leave the clinic right after the procedure is done, regardless of their condition, in order not to bring suspicion. They\'re asked to park their cars far away from the place of appointment.\xa0\nSome of the informal groups specialize in organizing abortions abroad. Ciocia Basia, a group of volunteer activist, helps to organize legal abortions in Berlin. For a price of 290/390 euros, they arrange pharmacological and chirurgical abortions in clinics, help with translations and offer a couch for the women coming over. Another popular destination is Slovakia and Czech Republic - it\'s super easy to find websites in Poland of clinics in these countries that provide with professional and anonymous help. Prices are similar to those in Polish underground.\nAnd then you have the pharmacological abortion. There are two drugs containing\xa0misoprostol registered and available in Poland, one of which can be bought without the prescription. Women usually end up making up stories about stomach pain or rheumatic grandmothers to buy them. Sometimes both of them can be obtained from "under the counter", forums also advise to ask a man to help\xa0buy them. Misoprostol should be accompanied by mifepristone to increase effectiveness (the combination of both has 98% effectiveness, while only misoprostol alone is between 80-90%), but the latter drug is not registered in Poland. In this case organizations such as Women on Waves help to buy and ship\xa0them from other countries (they ask for donation of minimum of 70 euros, but they do support women in economic difficulties by providing them for free). It is well known that some of the doctors write prescriptions for these drugs (a pack of 12 costs 25 zl, but can be sold 10 or more times more expensive on the black market) and help women get access to them via advertisements. It\'s impossible to track as these drugs are not refunded by the state - therefore not registered anywhere.\xa0\nDue to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek\xa0abortions or just had one, share their stories\xa0and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It\'s recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save\xa0lives in some\xa0instances of home abortions.\xa0\nI am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.', u'entity_id': 793, u'annotation_id': 8279, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Legal structure:\xa0 Our intention is to separate out the capital assets from the business of caring. The precise legal structure remains to be worked out but may be similar to a so-called community land trust (see http://www.communitylandtrusts.org.uk/what-is-a-clt/about-clts) where one organisation (maybe a charity) owns the freehold of the land and a social enterprise runs the care home. \xa0There would be some element of employee ownership, which has been shown in many businesses to encourage higher than average levels of productivity and profitabilit', u'entity_id': 758, u'annotation_id': 8280, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u"he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates", u'entity_id': 502, u'annotation_id': 8281, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Since the crisis begun, it is becoming increasingly difficult to do anything in a formal, legal way. This is one of the main reasons why most groups here operate under the radar -which on the other hand is not necessarily a bad thing. But this means that growth comes in relatively slow steps and is hindered by the lack of access to funds and other resources. For example, setting up an NGO costs around \u20ac1000 and has an annual \u20ac1000 \u2018trade tax\u2019 (literally a levy to allow you to do business) -this applies to social enterprises too. And although this is not as bad as having to prepay 100% of next year\u2019s taxation like with most small businesses (or 50% for farmers) it still might pose a problem for people who want to do exactly that: do something without business profit in mind.', u'entity_id': 560, u'annotation_id': 8282, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 683, u'annotation_id': 8283, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Well done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs / traditions).\xa0\nIt may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages.\xa0I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety,\xa0hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds ("we have to comply with all these expensive regulations, whereas these guys just go gray economy").\xa0\nIn passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue\xa0capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.\xa0\nSo, I guess a first step towards\xa0A Taste of Home\xa0is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?', u'entity_id': 6539, u'annotation_id': 8284, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"I love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.\xa0\n\nProblem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!\xa0\n\nGood luck with the project and keep us up to date!", u'entity_id': 14420, u'annotation_id': 8285, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"Whaaa that would be a dream, but in Brussels for 'safety reasons' we can't BBQ in any park in the region, i'm really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don't have any open air pool in Brussels eith", u'entity_id': 18277, u'annotation_id': 8286, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"Where I come from a\xa0funny thing is happening: everyone loves festivals, especially during this time of the year, May-June before students are out of town for holidays. We had very strict regulations about sitting on the grass\xa0in our central park, you know that kind of green space where you really want to spend time in nature but can't because it's too cosmeticized? Nowadays there's Jazz in the Park and the Big Hammock Day and these kinds of events which start as one offs but then create a demand and become a habit. What they have in common is that they start with a big push.", u'entity_id': 18648, u'annotation_id': 8287, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20863, u'annotation_id': 8288, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"@Louisa good luck with your idea!\xa0\xa0I've had\xa0something like this in mind\xa0but I didn't find enough funs for this\xa0Urban Cooking. You can have a formal green light if the municipality (or whatever) agrees and then you can organise the routine part like informal just for the atmosphere. In Greece we have strict rules (only in papers) about public spaces but every municipality has special Regulatory Decisions. The municipality services inform about the legality and in cooperation with the councilors or/and the citizens apply the final idea. Did you ask the topical authorities about that?", u'entity_id': 22447, u'annotation_id': 8289, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\xa0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references", u'entity_id': 21205, u'annotation_id': 8290, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'However, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be "ok, let\'s ignore this step and bypass it".\nThere are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents\' costs, etc on the side of providers).\nOf course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that\xa0is almost\xa0"ethical": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as\xa0gut feeling here, but I am open to discuss it in depth later)\xa0the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final "accidents" that will always happen (only that which does not work, will not break).\xa0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model "exploitative", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.\nSo, what would be the general ecosystem\' services that would keep this garden grow orderly? I don\'t see this answered (that\'s not an easy one,\xa0indeed)\nResearch, and "citizen science", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.\nFor the sake of our understanding, let me be pedant and allow me to stress that\xa0disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status.\xa0A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a "because".\n\nI would like to not dig too deep in the question about why the current "solutions" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let\'s be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don\'t normally ask themselves questions like "how long will this work continuously?", "what will be the safety mechanism once it turns off, as instance because of battery exhaustion?", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?",...\nLet\'s not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter "being poor means having too much end of the month"... it may steal a smile, but it\'s a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.', u'entity_id': 23523, u'annotation_id': 8291, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 8292, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u"Hey @Noemi, this is just something cultural that people have always been doing in\xa0Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is\xa0not allowed to cook in public parks any more even though they use\xa0a traditional\xa0portable clay pot for coal/making fire and there is no hasard in cooking open air in such way...\nWhen people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.", u'entity_id': 18382, u'annotation_id': 8293, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'Of course there are many issues about copyright, legal implications, safety, patenting and certification. What is sure is the interest not only at WeMake and other fab labs, but from the bigger community of innovators taking action inside opencare framework.', u'entity_id': 839, u'annotation_id': 8294, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u"It's a valid point, @Rune . Honestly I am really scared by the ethical implications of research,\xa0any\xa0research. They can be paralysing. Of course, if your tools are lasercutters rather bioreactors, and your goal is design rather than human health,\xa0the ethics become less scary.\xa0\nIn practice, though, insulin is insulin. There are ways to test whether a chemical is, indeed\xa0insulin, or something else. And if it is, you are good: the same molecule should work in the same way, no matter its production process. Also, GMOs per se are not illegal in the U.S. Their attitude is very different from that of Europe.", u'entity_id': 24843, u'annotation_id': 8295, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u'How do we ensure compliance with legal frameworks and patents?\nHow do we ensure reliability and safety for users?', u'entity_id': 6439, u'annotation_id': 8296, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Legal frameworks and patents. How to make things reusable for everyone regarding regulatory and patent framework?', u'entity_id': 6459, u'annotation_id': 8297, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'Has been active on the platform. He\u2019s looking specifically at legal frameworks that open new ways to create assets and manage them. A government is an agreement, a company is an agreement. Instruments (eg. shares, debt, derivatives). Nuance between rules of the game and the ball. If you\u2019ve got resources, why do you need money? What sort of agreement or accounting or means of keeping score to do what we need to do. Has been conducting an international review and a historical review. What was here before banks? Commons? No, made proprietary. How has it been enclosed? 75% of money in existence is based on land. Came about through banks lending money for mortgages. Nobody really knows how the system works. How can we use complementary means to get done what we need to do with as little need for the system as possible, bootstrapping.', u'entity_id': 38786, u'annotation_id': 11895, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u'It does not exist legally . His material is fiercely proclaimed: "MCCH is a voluntary organization without legal status and not taxable, and is not a \'non-profit organization\'." (Maria: "Technically we are illegal.")', u'entity_id': 4913, u'annotation_id': 12878, u'tag_id': 1074, u'entity_type': u'post'}, {u'quote': u"However you have a point. Help us to find a way to ennsure that this is legal and how participants can be ensured in case of accidents. Please?\n\ndon't get your point about IP!???? We are in open context, free,", u'entity_id': 33426, u'annotation_id': 12879, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"As far as I know the reason why you wouldn't see explicit calls for drug transports is because legally you're not allowed to transport but your own. So this is a grey area -people needed to say it's their own if asked at the airport or borders, although technically they couldn't have been arrested on such grounds.. after all they weren't commercializing anything.\xa0Even if the s*** hit the fan,\xa0no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system\xa0and covered by the medical insurance!\xa0For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses.\xa0This is merely a more efficient and structured way of doing the same.\xa0\n\nStill, the network was semi-legal, meaning it operated under no clear incidence of laws. It's\xa0why I remember reading about\xa0Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie\xa0his face never shows.\xa0\n\nFrom looking at the website, it seems the network worked based on collecting forms filled in by patients/family with requests for medicine - it's not clear though how much of the\xa0matchmaking was aided by the technology and how much\xa0was done manually, through Vlad and his network. Anyhow, most people who were part of it didn't know each other IRL\xa0- like Vlad and Valeriu, who were key nodes in the network!\n\n@Sabina_U, lovely to meet you virtually, and hopefully in person soon!", u'entity_id': 17546, u'annotation_id': 12880, u'tag_id': 1074, u'entity_type': u'comment'}, {u'quote': u"@Branislava and @Noemi, unfortunately, i haven't been south from Slovenia - I know a bunch of progressives from the Balkans, but sadly none of them is strictly dealing with LGBTQ rights. If I come across something interesting, I will let you know - If you want to work with really good organizations, I would suggest checking Rutgers. In Poland, we have a wonderful group called Ponton. My sex educator friend always said the best places for sex ed are Netherlands and UK (I guess France and Germany are also pretty wonderful), so I would do more digging there.", u'entity_id': 14745, u'annotation_id': 8301, u'tag_id': 1075, u'entity_type': u'comment'}, {u'quote': u"permitted by law. We too were dominated by church, but things do change. The third level education system is pretty good here. Recently Teach Solas resource centre got up and running. I wasn't involved myself apart from enjoying the parades and voting on the referendum. I don't think the journey was easy, but attitudes have changed greatly here. I hope that change can spread. I will ask them a bit more about their journey, maybe there are clues as to how? and where to start? One thing I remember is that the rainbow was used very strongly during campaigning.", u'entity_id': 11931, u'annotation_id': 8300, u'tag_id': 1075, u'entity_type': u'comment'}, {u'quote': u"Bearing in mind that Serbia is extremely patriarchal country that many many people primarily uneducated, ignorant, limited by dogma, the church has a strong influence, the police is on the side who persecute\xa0LGBTQ,\xa0laws are not adopted nor respected,\xa0even the media are not friendly.\nBeing different in any sense means to be condemned, discriminated against, rejected. Like\xa0it is not enough that we have to\xa0deal with our\xa0demons and problems, and that's not enough, we have to fight with the rest of the world. And what is worse it is futile struggle, doomed to fail.\xa0\nI'm not a member of\xa0\xa0\xa0LGBTQ,\xa0I can not imagine what is happening in their soul,\xa0I believe it's scary and it's hard, extremely hard.\xa0\xa0I am someone who looks soul who hears the words and I really am not interested in anything else, really can not understand why anyone would be bother by\xa0LGBTQ, I ask why?\nWe are free, to do what we want, right? So why,\xa0Some give themselves the right to determine how we should behave, what to eat, who to love, how to dress, to be socially acceptable, and why we shoud care about their opinion.\xa0Unfortunately these moralists are the majority in our country, fake moralists who point out other people's mistakes to cover up their own, chasing people only that they would not be marginalized, persecution, condemn so they would not be convicted, these are people who also suffer, but they\xa0damage others and society as a whole, ALL of that can be cured.\xa0\nFirst, people need to understand that we are all different, but equal, we all have the right and that nobody has the right to endangers or give us verdict\xa0how we're going to live, that everyone should be looking at themselves and their own\xa0life, to solve their problems and \xa0not to care about other people's problems.\ntell me how\xa0wedding and adoption of a child endanger other families, how sex change threatens others, or dresses \xa0make \xa0someone uncomfortable ????\nImagine\xa0pain of \xa0LGBTQ and you, with your limited minds\xa0consider them ill and reject them and persecute, torture and abuse\n\xa0Our society have to change from the root, I regret and\xa0I am ashamed because I live in such\xa0society and \xa0that situation is not changing\nWe have to change family, education, political estambilsmenta, police,\nthe mind is like a parachute works only when it is open\nit is easier to break an atom than a prejudice\nWe need to do the impossible\nI believe that we can, step by step, it will not be easy,but we simply have to change everything , this is not a life and it is not worth to live like that", u'entity_id': 857, u'annotation_id': 8299, u'tag_id': 1075, u'entity_type': u'post'}, {u'quote': u'liberation', u'entity_id': 521, u'annotation_id': 8302, u'tag_id': 1076, u'entity_type': u'post'}, {u'quote': u'hat should be a simple request for licensing, and given that the licence terms for this district are insanely onerous, I', u'entity_id': 671, u'annotation_id': 8309, u'tag_id': 1079, u'entity_type': u'post'}, {u'quote': u'Another interesting data point you have found is about licensing and regulation. Is two months a long time to get a license in the UK? If so, what do you think is going on, and how could it be fixed?', u'entity_id': 8207, u'annotation_id': 8308, u'tag_id': 1079, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 8313, u'tag_id': 1080, u'entity_type': u'post'}, {u'quote': u"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.\xa0\n\nI think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?\n\n\nhttps://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.", u'entity_id': 19695, u'annotation_id': 8312, u'tag_id': 1080, u'entity_type': u'comment'}, {u'quote': u'Thanks for sharing your views on this. Not opening up data right away is a compromise for sure, one that I do not particularly like, but\xa0I can see reasons. Maybe these\xa0are wrong,\xa0I have no answers.\nWe have not really produced data ourselves yet. Looking forward to when we do and at that point, the team should make the call together. Then it is a conscious and collective decision.', u'entity_id': 18064, u'annotation_id': 8311, u'tag_id': 1080, u'entity_type': u'comment'}, {u'quote': u"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data,\xa0thanks\xa0to their size. Smaller companies can't do much with the\xa0data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be\xa0closer to a transaction (a gift, even).", u'entity_id': 11937, u'annotation_id': 8310, u'tag_id': 1080, u'entity_type': u'comment'}, {u'quote': u"Waag Society and Digi.bio are organising a biohackathon on July 8-9 in Amsterdam. They asked if we are up for joining with a team of 4-5 people. We will be able to experiment with the open source microfluidics chips Digi.bio has developed.\nThe event will be a mix of presentations and hands-on work, with a focus on the latter. Many experts in the field will be there. Waag Society itself is of course also worth a visit!\nThis is a good occassion to get some more input on the plans we have regarding microfluidics.\nWe can already go on the evening of the 7th to avoid early travels and to enjoy the\xa0evening in Amsterdam.\nAs we discussed in the meeting of June 7th, we could\xa0try to replicate some of the work we do with the plasmids on the chips.\nWho's up for joining? Any other ideas?", u'entity_id': 6388, u'annotation_id': 8320, u'tag_id': 1081, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 8024, u'annotation_id': 8319, u'tag_id': 1081, u'entity_type': u'comment'}, {u'quote': u'Only after some months I came back to check the post and i found that someone ( @Rune ) replied with a comment. So, I got in touch with Rune and planned to meet at Master of Networks that took place at WeMake in Milan.\nWe could discuss for long and shared many points of view.\nSince then we have been talking about a common little project and how to realize the shared idea of open care to involve and empower patients. We even agreed on writing a academic paper together.\n\xa0\nThanks to the digital ethnography the first results of the network analysis were the metrics about involvement of users. Opencare staff users were the most present and with a higher number of posts and comments.\nThe most active two persons on opencare infrastructures, but not from the staff, were @Federico Monaco (ranks 7th by in-degree) and @Rune (ranks 13th) (for further information check: https://edgeryders.eu/en/opencare-research/the-wonder-of-open-notebook-science-opencare).', u'entity_id': 862, u'annotation_id': 8318, u'tag_id': 1081, u'entity_type': u'post'}, {u'quote': u'Along with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.', u'entity_id': 848, u'annotation_id': 8317, u'tag_id': 1081, u'entity_type': u'post'}, {u'quote': u'4- Offline events. We realized early in our learning process in the group, that online presence alone is not going to help us reaching our goals. We organize collaboratively offline events: physical activities (walks), risk factors screening, interactive conferences and\xa0workshops. All those events are organized by members of the group. We use the online tools to recruit members who want to collaborate in the organization. We share with them some key principles and support. We use the online tools as well for advertisement of the events. The access to all the physical\xa0event is free of charge. We use a collaborative process to raise the funding, using members of the group that has skills and key positions in potential funding structures. By doing so, we were capable of raising up to 25000 dollars in 2015 to organize physical events. This is happening in a context where the ministry of health do not have any internal budget for this kind of event. The local representation of WHO makes about 2000 dollars only available for this kind of event. In the organization of those offline events, community members hold\xa0a lot of power in the process.', u'entity_id': 21489, u'annotation_id': 8316, u'tag_id': 1081, u'entity_type': u'comment'}, {u'quote': u"What I like most about your initiative is that you organise offline gatherings like the walk, and I'm curious how they work,\xa0if you learn new stories. For example, some people here in the community mentioned how for them\xa0health- or social\xa0care is about reciprocity:\xa0People help other people in need and receive help when the time comes when they need it. Do you know how the people in your group relate to care? Is it a service or more a commmunity that they are part of", u'entity_id': 15220, u'annotation_id': 8315, u'tag_id': 1081, u'entity_type': u'comment'}, {u'quote': u'intense physical experience: smelling the laser in the morning will push you humans in flesh and blood (AFK) can use different kind of communications channels (they can also make faces without using emoticons)\n \n\npeople around us can act as serendipity triggers (I.E. \u201cDid you know that you can do this ..\u201d)\n \n\nhaving a lot of materials and tools at hand can foster your ingenuity \xa0\n \n\niteration is key: discard a yesterday idea and try the today, new one\n \n\nyou\u2019re not alone: working in your office is great, but having people around you is awesome!\n \n\ntacit knowledge: learning from others makers (designers, artists, tinkerers...) working around you is an hidden but huge diffused competence and skills repository\n \n\nexplore different points of view about your project: There\u2019s the s*** you know, the s*** you know you don\u2019t know, and the s*** you don\u2019t know you don\u2019t know (right?).\n \n\nonline + offline = GREAT THINGS!', u'entity_id': 6206, u'annotation_id': 8314, u'tag_id': 1081, u'entity_type': u'post'}, {u'quote': u"visual acuity...)\nAgain - the major issue is the fact that we don't have joined up thinking, but increasing fragmentation in health and social care. Each individual element is asked to cut costs and reduce facilities, even if that results in massive costs elsewhere...", u'entity_id': 29962, u'annotation_id': 8321, u'tag_id': 1082, u'entity_type': u'comment'}, {u'quote': u'What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.', u'entity_id': 15996, u'annotation_id': 8323, u'tag_id': 1083, u'entity_type': u'comment'}, {u'quote': u'When it comes to social care, it is important to create links between the social movements, in a way they continuously support and feed back to each other, finding solutions that are creative, radical and practical at the same time.', u'entity_id': 792, u'annotation_id': 8322, u'tag_id': 1083, u'entity_type': u'post'}, {u'quote': u'Thermosflask improvements (big & glass)\nHot air pump for sleeping bag', u'entity_id': 24595, u'annotation_id': 12885, u'tag_id': 1084, u'entity_type': u'comment'}, {u'quote': u"@trythis thank you! I 'll study all these carefully! We don' t do backpacks for the refugees anymore so we focus to backpacks that we can prepare for ourselves or other people and keep them for an emergency. So, we have to think about many diffirent things. For the refugees I've done this:\n\n\n01 \u03915 \u03a0\u0395\u03a1\u0399\u0395\u03a7\u039f\u039c\u0395\u039d\u0391 \u03a3\u0391\u039a\u0399\u0394\u0399\u039f\u03a5.jpg1240x874 172 KB\n\n\nBut this is a draft. It needs something professional with the same style in a platform on line. When somebody wants to prepare a backpack could use specific items and also a list with more details for its item. What is this? How to use it e.t.c.", u'entity_id': 12941, u'annotation_id': 12884, u'tag_id': 1084, u'entity_type': u'comment'}, {u'quote': u'It is much easier to get kids to wash their hands while they play with something. Small pebbles or pearls also rub the hands so they get cleaned much better. Kids are big bacteria spreaders. More on hygiene. You can make a sink with the space blanket and duct tape, or an old plastic ice cream package (1L weighs 30g).\nfor washing clothes you can use the space blanket.\nI would recommend 3 (ziplock?) plastic bags with sugar (perhaps with stevia - more weight efficient), salt, and a piece of soap. One bag big enough for this hot water "bottle". Heating or use hot rock or sand.\nsterile saline solution (smallest possible), if you need more desinfected water, you can also boil\na comb (or just half)\nvasiline (part for real use, but more for "magic cream" placebo effect)\nkids earplugs (use alcohol to desinfect!), probably smart to tie in a piece of string for safety.\nantiseptic wipes (can be "refilled" with alcohol)\nin terms of clothes I would try to reduce cotton. Wool is fine for warmth if you have a windbreaker, if you can have at least one set of synthetic undergarments as they dry much faster than cotton.\npersonally I love wool leg warmers combined with short wool socks in the outdoors. Socks can be swapped and kept dry without much extra weight. The warmers can be regulated while walking and can be also used in many different ways. I\'m not sure if they work well for kids though.', u'entity_id': 12568, u'annotation_id': 12883, u'tag_id': 1084, u'entity_type': u'comment'}, {u'quote': u'cordage (e.g. paracord, even dental floss or duct tape can vastly improve temporary shelter, duct tape or other adhesive doubles as band aid), some shock cord (elastic) can also be very helpful.\nalcohol for desinfection (e.g. the hand wash gel type)\nanother space blanket (very little weight high utility especially with some how-to, also good as toy), with your background you might find a way to rig it into a jerven bag like thing.\npieces of sleeping pads, probably sized to be large enough to sit on when folded once, becomes more useful with cordage.\nPower for phones: booster for charging from small batteries, buck (alternative) for charging from car battery (1 has enough for 200 phone charges), should probably be ruggedized e.g. by dipping in candle wax.\nfor kids a hand warmer can help out a lot in increment weather (single use)\nat temporary camps a rugged bluetooth speaker could really help the kids unwind\nmaybe replace the gloves by more socks that can be worn on the hands as well\nI would recommend 2 caps (beanies that go over the ear) if you have enough\nsome water bottles have a special kid friendly openings but attach to regular bottles.\nIn terms of shoes I think slightly oversize croc style (rooms for woolen socks, or maybe inner soles?) are the best minimum stress options.', u'entity_id': 8405, u'annotation_id': 12882, u'tag_id': 1084, u'entity_type': u'comment'}, {u'quote': u'@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered\xa0 to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it\'s more complicate than it seems. The people want to help but very often the misunderstand\xa0 the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word "crocs" and use the word "clogs" because many people thought I\'m trying to advertise them). Especially for this, a woman from a "...welcome" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn\'t ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it\'s easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it\'s ....hard to explain...', u'entity_id': 11600, u'annotation_id': 8325, u'tag_id': 1084, u'entity_type': u'comment'}, {u'quote': u'*The winter list for children: Small backpack, waterproof poncho, aluminum blanket, flashlight, socks, rain boots, sports shoes or plastic clogs, underwear, a tracksuit or a change of clothes, cap, gloves, scarves, lunch box, plastic spoon, fork, knife, a bottle of water, cookies, nuts, dried fruit or other snacks, wet wipes (small package), tissues, toothbrush, samples (of sunscreen, shampoo, toothpaste etc.), a toy, note or drawing pads, crayons, pencil, sharpener, eraser, a whistle and a wish (!!) (We also ask for big scarves to use them as ring sling baby carriers or as sheets)', u'entity_id': 550, u'annotation_id': 8324, u'tag_id': 1084, u'entity_type': u'post'}, {u'quote': u'library and reading service', u'entity_id': 39328, u'annotation_id': 11623, u'tag_id': 1085, u'entity_type': u'post'}, {u'quote': u'Ideally, yes, but we\u2019ve worked with many CHWs\xa0that have mixed or low literacy. For example, the Female Community Health Volunteer (FCHV) network in Nepal has mixed literacy. We\u2019ve equipped them with basic phones where the FCHV can text something very basic like \u201cP 12 Jill\u201d to mean \u201cJill is pregnant, her last menstrual period (LMP) was 12 weeks ago.\u201d Then, Medic Mobile will send the health worker SMS messages, reminding her to remind Jill about her antenatal care checkups. Someone with a low level of literacy can still use these messages, and we provide booklets/guides to make sure they can remember how. We also have a thorough training process, where we start with teaching these health workers (if needed) how to turn on their phones, how to enter characters, everything from soup to nuts. In Nepal specifically, many FCHVs have reported feeling more empowered and motivated after being trained to use these mobile tools for their work.', u'entity_id': 564, u'annotation_id': 8326, u'tag_id': 1085, u'entity_type': u'post'}, {u'quote': u'As for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?', u'entity_id': 7567, u'annotation_id': 8327, u'tag_id': 1086, u'entity_type': u'comment'}, {u'quote': u'Winnie:\xa0some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point', u'entity_id': 6415, u'annotation_id': 8329, u'tag_id': 1087, u'entity_type': u'post'}, {u'quote': u'When she works for the semi-public private space project Huis VDH she finds the same logic. Creating common spaces that gives the feeling of a home, but are able to invite people over to use it in certain ways. Why have a big living room with kitchen for social events that you organize four times a year at home when you could share such space with other people. Some things can be privatized but not everything. In the same line of thought she sees empty spaces above shops or pubs and restaurants as an opportunity to create common spaces for people living small. You could think: why not set bigger apartments above those places? That could immediately make it difficult for the bar or restaurant holder to continue his night live activities, and also this plays an important role in the city.', u'entity_id': 745, u'annotation_id': 8328, u'tag_id': 1087, u'entity_type': u'post'}, {u'quote': u'Many semi-independent manufacturing efforts that are localised, but sharing knowledge.', u'entity_id': 38856, u'annotation_id': 11873, u'tag_id': 1092, u'entity_type': u'post'}, {u'quote': u"I'm excited to learn together how we can bring these localized solutions to life, within a relationship of equals, working on a common cause from our unique perspectives.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentopen insulin\n\n  \n    \n    \n      Cancel\nSave", u'entity_id': 38850, u'annotation_id': 11854, u'tag_id': 1092, u'entity_type': u'comment'}, {u'quote': u'in the end thanks for sharing this here, this could inspire others to continue working on localized solutions rather than following the same colonial influence in a new way.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentwater\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 38834, u'annotation_id': 11849, u'tag_id': 1092, u'entity_type': u'comment'}, {u'quote': u'small communities tackling local problems, using\xa0collectives\xa0procedures and new technology.', u'entity_id': 26031, u'annotation_id': 8349, u'tag_id': 1092, u'entity_type': u'comment'}, {u'quote': u'From our point-of-view at "Makers", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an "automated manufacture pod" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.', u'entity_id': 19837, u'annotation_id': 8330, u'tag_id': 1088, u'entity_type': u'comment'}, {u'quote': u'With the shopkeepers, we redefined ML\'s unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People\'s Designation of Origin). This means local products \u2013 Milano is a farming city, with many farms to the immediate south of the city. It also mean "new local" products, for example we sell\xa0teff\xa0used in Eritrean and Ethiopian cuisine.', u'entity_id': 804, u'annotation_id': 8331, u'tag_id': 1089, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 8341, u'tag_id': 1090, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 8340, u'tag_id': 1090, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7855, u'annotation_id': 8339, u'tag_id': 1090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 833, u'annotation_id': 8338, u'tag_id': 1090, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 31152, u'annotation_id': 8337, u'tag_id': 1090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29967, u'annotation_id': 8336, u'tag_id': 1090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29086, u'annotation_id': 8335, u'tag_id': 1090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14770, u'annotation_id': 8334, u'tag_id': 1090, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 8333, u'tag_id': 1090, u'entity_type': u'comment'}, {u'quote': u'The aforementioned pushed the Politecnico University to challange itself asking \u201chow can our student transitional community and residents develop positive interactions and give new life to the district?\u201d.\nThis is what the course \u2013 PSSD 2017 Networks of Care Collaborative encounters in/around the Bovisa campus \u2013 is about.\nEzio Manzini and Liat Rogel, with Susanna De Besi wanted this to be the focus of their students\u2019 work for this year. And they suggested the students to interact with the edgeryders community as their works progress.\nToday introduction ended with the following questions to students:\nReferring to your everyday interactions with Bovisa, when are you in need for care? \xa0And when are you willing to provide care to somebody else?', u'entity_id': 832, u'annotation_id': 8332, u'tag_id': 1090, u'entity_type': u'post'}, {u'quote': u"In my view, there's two clear levels to this: local collaboration and international collaboration. Both are interesting to research seperately, and the combination even more so.\xa0For good measure, local research groups participating in this are (or should be)\xa0inevitably autonomous in practical aspects. Save the occasional shipping of a sample to replicate experiments\xa0or other small stuff like that. This entails that the local element\xa0will have coordination costs in the form of time, money\xa0and energy\xa0to\xa0keep\xa0the community and project going through a potentially long and tough research track.", u'entity_id': 25366, u'annotation_id': 8342, u'tag_id': 1091, u'entity_type': u'comment'}, {u'quote': u'Interesting way of phrasing it, "social hiatus". I am wondering if you have your own memory of feeling strange or unease, or lonely in a situation. How long have you been living in the neighborhood?\nFor me and my colleagues in Edgeryders, being new to a city like Brussels (we live here\xa0but we are all expatriates)\xa0definitely risked feeling loney or unfit. It made us reconsider our lifestyle habits and become more social in our own living environment, through trying\xa0co-housing. The reason it works is that we are both designers and subjects of the experiment, so we only designed what we are willing to do. Have a look at the story we posted\xa0and feel free to comment there or here..\xa0do you socialize or create bonds with people in Bovisa outside your student circle or friends? if yes, great. if no, what are the constraints at the personal level?', u'entity_id': 7784, u'annotation_id': 8355, u'tag_id': 1093, u'entity_type': u'comment'}, {u'quote': u"It's a grand idea and project. \xa0Your writeup says it started in 2012. \xa0How has it been going since then? \xa0Has it got those men to talking with each other more? \xa0I am sure it does, even if it is about the beermaking. \xa0That by itself would show it as a success since those guys aren't so alone anymore..", u'entity_id': 10198, u'annotation_id': 8354, u'tag_id': 1093, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20209, u'annotation_id': 8353, u'tag_id': 1093, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 8352, u'tag_id': 1093, u'entity_type': u'comment'}, {u'quote': u'Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people\u2019s caring and collaborating capabilities and doing so, creating new forms of care-related communities.', u'entity_id': 832, u'annotation_id': 8351, u'tag_id': 1093, u'entity_type': u'post'}, {u'quote': u"Also, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.", u'entity_id': 29079, u'annotation_id': 8350, u'tag_id': 1093, u'entity_type': u'comment'}, {u'quote': u"Though I value the merit of doing stuff on a project basis as you describe, I also think for the complex issues like education, housing, medicine, sustained effort is needed. An overly large focus on well-defined projects limited in time risks perpetuating\xa0a 'quick fix' narrative and devaluating\xa0sustained\xa0effort\xa0that is not as 'sellable', in my opinion. I believe in a healthy mixture and I see most funding initiatives now focus on the project model, so I advocate for more of the long-term view.\nThat being said: it's a big idea, but worth pursuing @Damiano .\xa0Say that you needed to choose one aspect (eg. connecting projects to hosts)\xa0and test it by the end of next week, what would you do?", u'entity_id': 23259, u'annotation_id': 8369, u'tag_id': 1097, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 9599, u'annotation_id': 8368, u'tag_id': 1097, u'entity_type': u'comment'}, {u'quote': u'These are exactly the questions we are dealing with right now. We started off with honeycomb cardboard as you see on the pictures because its very easy to work with even if you dont have proffessional tools. The Problem though: it\xb4s not long lasting. The stuff we build with the the refugees about a month ago is already loosing its shape.', u'entity_id': 21499, u'annotation_id': 8367, u'tag_id': 1097, u'entity_type': u'comment'}, {u'quote': u'"Long tail" markets would feature many niches, each one with the economies of scale in consumption aforementioned, but making space for more artists just by virtue of being many. So your question is theoretically valid, but I do not know the answer.', u'entity_id': 32276, u'annotation_id': 8357, u'tag_id': 1094, u'entity_type': u'comment'}, {u'quote': u"Interesting economic analysis, @Alberto. Is there any evidence that the 'long tail' effect is changing things in artistic 'markets'?", u'entity_id': 32275, u'annotation_id': 8356, u'tag_id': 1094, u'entity_type': u'comment'}, {u'quote': u"I remember @Alex_Levene writing about the camp in Calais and the fact that coordination happens through medium to long term volunteers. Could they\xa0be the kind of primary\xa0asset that can help do inventoring, mapping, research for this stage you're at?", u'entity_id': 14969, u'annotation_id': 12887, u'tag_id': 2113, u'entity_type': u'comment'}, {u'quote': u"I don't have a fully formed idea, but I thought that projects that did well after the first crowdfunding could get back on the platform after 1 or 2 years.\nAlso, the projects after funded should remain in a dedicated part of the platform to keep updated the community, and there anyone is free to donate more whenever they want.\nWe need a little money to", u'entity_id': 23282, u'annotation_id': 8366, u'tag_id': 2113, u'entity_type': u'comment'}, {u'quote': u"Though I value the merit of doing stuff on a project basis as you describe, I also think for the complex issues like education, housing, medicine, sustained effort is needed. An overly large focus on well-defined projects limited in time risks perpetuating\xa0a 'quick fix' narrative and devaluating\xa0sustained\xa0effort\xa0that is not as 'sellable', in my opinion. I believe in a healthy mixture and I see most funding initiatives now focus on the project model, so I advocate for more of the long-term view.\nThat being said: it's a big idea, but worth pursuing @Damiano .\xa0Say that you needed to choose one aspect (eg. connecting projects to hosts)\xa0and test it by the end of next week, what would you do?", u'entity_id': 23259, u'annotation_id': 8365, u'tag_id': 2113, u'entity_type': u'comment'}, {u'quote': u"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment.\nAs a first contact, the university counsellor\xa0was a good help. However, the number of appointments one\xa0can have with them\xa0is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time\xa0until they\xa0find someone they feel comfortable with.\nI saw\xa0a doctor too, which did some tests to see that\xa0there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.\xa0\nWhen you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy,\xa0this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning\xa0point where you decide\xa0that something needs to happen, that you need some kind of help now, because you don't know what to do anymore,\xa0and then you are told that the next possible appointment is in 8 weeks.\xa0\nWhat am I going to do until then? Is it possible to somehow\xa0improve this process? What kinds of\xa0other temporary support structures might there be\xa0that could help\xa0people in distress?", u'entity_id': 15782, u'annotation_id': 8362, u'tag_id': 1095, u'entity_type': u'comment'}, {u'quote': u'Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.', u'entity_id': 22039, u'annotation_id': 8361, u'tag_id': 1095, u'entity_type': u'comment'}, {u'quote': u'Approval \xa0from the ministry of health for a medical device (15k\u20ac >2 years)', u'entity_id': 17949, u'annotation_id': 8360, u'tag_id': 1095, u'entity_type': u'comment'}, {u'quote': u'95 % of the time you wait, pay tickets, try to get the right documents and wait for someone to (re)-type (using only the indexfinger) your anagraphical details (already electronically registered).', u'entity_id': 11945, u'annotation_id': 8359, u'tag_id': 1095, u'entity_type': u'comment'}, {u'quote': u"4) Affordability - although health care is free ('at the point of use') in the UK, it is, in effect, rationed; waiting lists are getting longer again, and many NHS trusts are effectively bankrupt. C&MACs offer a form of healthcare without the expensive pharmaceuticals, electronics and salaried consultants. Most either offer a reduced rate (e.g. \xa320) or a sliding scale (e.g. \xa310-30, where you pay what you want). [I've found problems with both models - resistance to the idea of a sliding scale is very common, and often leads users to undervalue what is being offered. Given that it has taken the District Council 2 months (at this time of counting) to respond to what should be a simple request for licensing, and given that the licence terms for this district are insanely onerous, I have found a degree of freedom and enjoyment in simply offering treatments for free and explaining to patients what sort of average donation is necessary to keep the clinic open.] If all kinds of healthcare were funded equally, acupuncture would prove massively more cost-effective than many 'mainstream' modalities - not to mention less energy-intensive and ecologically-damaging.", u'entity_id': 671, u'annotation_id': 8358, u'tag_id': 1095, u'entity_type': u'post'}, {u'quote': u'Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person\u2019s final days, parting words and gratitude from the deathbed, captures of assisted suicide and \u201cright to die parties\u201d, and families commemorating the deceased.\nThese experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways \u2013 new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated.', u'entity_id': 548, u'annotation_id': 8370, u'tag_id': 1098, u'entity_type': u'post'}, {u'quote': u"The\xa0ideal of May '68 has become ingrained in the way the mainstream thinks.\xa0The loss of faith in government and institutions has become part of a normal way of thinking. Management and corporations have adopted it in a way: they want to get\xa0rid of the old and slow processes, they want radical disruption asap\xa0and would like as few interventions by government\xa0as possible. Government is mainly seen as an obstacle at this point.", u'entity_id': 20946, u'annotation_id': 8371, u'tag_id': 1099, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 8386, u'tag_id': 1102, u'entity_type': u'post'}, {u'quote': u'It\u2019s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we\u2019ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said \u2018the work is the therapy\u2019 - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society?\nWe\u2019ve recently spent a year curating a collaborative process to explore what it means to \u2018be GalGael\u2019. It saw us going back to our beginnings and drawing on the learning from our days as an anti-motorway protest camp. We wrestled with our assumptions - which were shared and which were disputed?\xa0We explored whether our purpose was actually underneath it all - to bring about greater love. This contributes to our being in a good place to\xa0explore this theme more widely in our own organisation\xa0and its practical application in more depth.', u'entity_id': 6304, u'annotation_id': 8385, u'tag_id': 1102, u'entity_type': u'post'}, {u'quote': u"To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.", u'entity_id': 846, u'annotation_id': 8384, u'tag_id': 1102, u'entity_type': u'post'}, {u'quote': u'"I don\'t think it is. The world is full for people who are scared. This fear drives their actions. But there are always others who respond to fear with love. This love is faith." He gave me a look that said \'strange European man, you know nothing of the world!\'', u'entity_id': 536, u'annotation_id': 8383, u'tag_id': 1102, u'entity_type': u'post'}, {u'quote': u'I agree with Alberto, epsecially in terms of having low risk starting points. \xa0Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only "let someone in" after they have demonstrated in some way their worthiness.', u'entity_id': 11618, u'annotation_id': 8388, u'tag_id': 1103, u'entity_type': u'comment'}, {u'quote': u'My take on this is: you create trust by collaborating, not the other way around. Collaboration comes first.\nThe trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.', u'entity_id': 9116, u'annotation_id': 8387, u'tag_id': 1103, u'entity_type': u'comment'}, {u'quote': u"Let me rephrase this to see if I understood correctly:\xa0your work with machine learning uses the output of Noel's computational work (matrices) as input, and when you have sufficient data, you can 'shortcut' the work by using those matrices directly to generate new matrices. In essence, automating, optimising and speeding up the modelling that he does now. Am I\xa0in the ball park?", u'entity_id': 6920, u'annotation_id': 8390, u'tag_id': 1104, u'entity_type': u'comment'}, {u'quote': u'This is the point where machine learning comes into play:\n\nUsing a set of example matrices, predict the matrices for new AA chains\nPerhaps use the information to directly build a model to predict stability of a given linker? The mechanistic information should somehow be used to improve the model (i.e. Vapnik\u2019s learning with privileged information)\nGiven a model, optimize the linker (SA, GA\u2026)\nBayesian optimization to search for promising under model uncertainty?\n\nMichiel out!', u'entity_id': 6379, u'annotation_id': 8389, u'tag_id': 1104, u'entity_type': u'post'}, {u'quote': u'2) social networks: people and groups which move fluidly across organisations and shaping the norms as they wish', u'entity_id': 541, u'annotation_id': 8393, u'tag_id': 1105, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 26037, u'annotation_id': 8392, u'tag_id': 1105, u'entity_type': u'comment'}, {u'quote': u'Care home residents come into care with social networks, habits, routines and pastimes, which are normally stripped away on entering care. As far as possible these should be maintained because these are part of the person\'s "support system". Involving the family and friends as well as the wider community will, whilst it may add to the complexity, lighten the burden of care and increase quality of life for all affected.', u'entity_id': 758, u'annotation_id': 8391, u'tag_id': 1105, u'entity_type': u'post'}, {u'quote': u"Makers in residence are supposed to deliver and publish on the web the output of their experience at WeMake.\n\nFinding the right way to record and develop a innovative and open experience seemed therefore a matter of concern in designing the opencare MIR program.\n\nDuring the last weeks GitHub, a social network for developers, became a obliged point of passage for some people at WeMake.\n\nGithub allows to create repositories, communities and webpages (gh_pages), among the main features. Putting a project on github makes possibile for members to contribute remotely and for anyone to view and download it.\n\n\nrite passage 2.jpg1424x1068 984 KB\n\n\nNot only makers, but some service designers involved had to take class on GitHub as well.\n\nThe idea was to instruct participants and support them to create by github repositories and pages.\n\nAlthough github is very known and used, not everybody there at WeMake is familiar with it.\n\nI've been knowing Github for some years, but is interesting to follow conversations and see how different persons see and use it.", u'entity_id': 868, u'annotation_id': 12889, u'tag_id': 2115, u'entity_type': u'post'}, {u'quote': u"It was great talking to you in Boston @thomasmboa , happy to see you here! I'm still impressed by your energy to make things better and your view on the maker movement.", u'entity_id': 37230, u'annotation_id': 11794, u'tag_id': 2115, u'entity_type': u'comment'}, {u'quote': u'I am Thomas Herv\xe9 Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).', u'entity_id': 37182, u'annotation_id': 11765, u'tag_id': 2115, u'entity_type': u'post'}, {u'quote': u'On Wednesday 31st of May there was the closure of the CALL FOR MAKERS | opencare Maker in Residence. \xa0\nThe application process wasn\u2019t easy at all! It required three main steps. The reason why of this process lies on our opencare vision: we strongly believe that a collaboration is also possible within online and offline communities, composed by professionals, doctors, researchers, practitioners, economists, social media experts, designers, activists but also real users, citizens, people with special needs, students, makers, tinkers and many other stakeholders interested in building encounters.\nBy clicking on this link you can read all the stories \xa0which applied to the MIR within the 3 topics : \xa0\n\n\nHacking and making\n \n\nHealthcare and social care\n \n\nOpen science and technologies\n \n\nAllright makers, time to stow the gab and announce the accepted projects.\nThe opencare team, based at WeMake, is glad to announce that the following projects will be officially part of the first edition of opencare Maker in Residence:\nWeHandU |\xa0\nThe Question: \nPerform simple and everyday tasks independently.\nThe Problem: \nA person with amputee hand and locked elbow.\nThe Solution: \nA helping device held in the hand, capable of interacting with multiple items\nContinue to read the Story of WeHandU on EdgeRyders.\n\xa0\nReHub | by Mauro Alfieri and Sara Savian @reHub\nThe Question: \nIs there a quantitative tool to monitor the hand rehabilitation?\nThe Problem: \nThe lack of a tool able to provide a digital feedback on the progress of proprioceptive physiotherapy.\nThe Solution: \nA wearable glove that can record and transmit data thanks to a sensor system.\nContinue to read the Story of ReHub on EdgeRyders.\n\xa0\nResQ | by Luca Tarasco Nushin Alishahi Emanuela Pucci Francesca Previati @resq\xa0\nThe Question: \nHow to help refugees in getting a more efficient healthcare service?\nThe Problem: \nLanguage barriers often lead to misunderstanding and psychological weight for foreigner patients.\nThe Solution: \nResQ is an app that connects physicians over common patients, providing a complete overlook to minimise language barriers.\n\xa0Continue to read the Story of ResQ on EdgeRyders.\n\xa0\nBreathing Games | by Fabio Balli, Povilas and Duglas\nThe Question: \nHow to ensure that (lifesaving) health innovation benefits all?\nThe Problem: \nCompetition and copyrights hinder the free use and adaptation of health innovation.\nThe Solution: \nWe co-create knowledge and technologies that can be used and adapted by everyone, in all countries.\nContinue to read the Story of Breathing Games on EdgeRyders.\n\xa0\nAllergoKi | by Nicoletta Faltracco and Monica Zambolin\nThe Question: \nThere are a lot of people with food allergies and/or intolerances, that too often are forced to renounce to have dinner outside because they are afraid to feel bad.\nThe Problem: \nPeople with food allergies and/or intolerances feel immense embarrassment every time they have to tell their health condition.\nThe Solution: \nAllergoKi wants to create a visual/tech \u201csystem\u201d placed in the restaurants or any food court, in order to have a comfortable and convivial atmosphere for anyone.\nContinue to read the Story of AllergoKi on EdgeRyders.\n\xa0\nIn the next days we are going to meet each team, in order to set a specific schedule in terms of calendar, resources, activities and much more.\n\xa0opencare Maker in Residece | WeMake team', u'entity_id': 865, u'annotation_id': 8397, u'tag_id': 2115, u'entity_type': u'post'}, {u'quote': u"Makers have a peculiar perspective and bird's eye to hack technology and open it. There was great interest around such a technical procedure and bureaucratical details.", u'entity_id': 850, u'annotation_id': 8396, u'tag_id': 2115, u'entity_type': u'post'}, {u'quote': u'From our point-of-view at "Makers", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an "automated manufacture pod" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.', u'entity_id': 19837, u'annotation_id': 8395, u'tag_id': 2115, u'entity_type': u'comment'}, {u'quote': u'Without surprise the most active and responsive people came from the makers and changemakers scene. They immediately connected to the higher goal and activated their network', u'entity_id': 541, u'annotation_id': 8394, u'tag_id': 2115, u'entity_type': u'post'}, {u'quote': u'@noemi Due to my PhD studies at Universit\xe9 Laval, I am currently based in Quebec, where I am a member of the Fablab EspaceLab Qu\xe9bec. As a researcher for the LABCMO (common Lab between Universit\xe9 Qu\xe9bec \xe0 Montr\xe9al and Universit\xe9 Laval), I am studying some makerspace in Qu\xe9bec. My interest in Biohacking is due to my background in biochemistry. But for my thesis my focus is Africa, that is why the topic is:', u'entity_id': 37591, u'annotation_id': 11808, u'tag_id': 1107, u'entity_type': u'comment'}, {u'quote': u'There are not many fablabs, makerspaces or \u2018protofablabs\u2019 in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.', u'entity_id': 37182, u'annotation_id': 11786, u'tag_id': 1107, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 773, u'annotation_id': 8405, u'tag_id': 1107, u'entity_type': u'post'}, {u'quote': u'On Wednesday 31st of May there was the closure of the CALL FOR MAKERS | opencare Maker in Residence. \xa0\nThe application process wasn\u2019t easy at all! It required three main steps. The reason why of this process lies on our opencare vision: we strongly believe that a collaboration is also possible within online and offline communities, composed by professionals, doctors, researchers, practitioners, economists, social media experts, designers, activists but also real users, citizens, people with special needs, students, makers, tinkers and many other stakeholders interested in building encounters.\nBy clicking on this link you can read all the stories \xa0which applied to the MIR within the 3 topics : \xa0\n\n\nHacking and making\n \n\nHealthcare and social care\n \n\nOpen science and technologies\n \n\nAllright makers, time to stow the gab and announce the accepted projects.\nThe opencare team, based at WeMake, is glad to announce that the following projects will be officially part of the first edition of opencare Maker in Residence:\nWeHandU |\xa0\nThe Question: \nPerform simple and everyday tasks independently.\nThe Problem: \nA person with amputee hand and locked elbow.\nThe Solution: \nA helping device held in the hand, capable of interacting with multiple items\nContinue to read the Story of WeHandU on EdgeRyders.\n\xa0\nReHub | by Mauro Alfieri and Sara Savian @reHub\nThe Question: \nIs there a quantitative tool to monitor the hand rehabilitation?\nThe Problem: \nThe lack of a tool able to provide a digital feedback on the progress of proprioceptive physiotherapy.\nThe Solution: \nA wearable glove that can record and transmit data thanks to a sensor system.\nContinue to read the Story of ReHub on EdgeRyders.\n\xa0\nResQ | by Luca Tarasco Nushin Alishahi Emanuela Pucci Francesca Previati @resq\xa0\nThe Question: \nHow to help refugees in getting a more efficient healthcare service?\nThe Problem: \nLanguage barriers often lead to misunderstanding and psychological weight for foreigner patients.\nThe Solution: \nResQ is an app that connects physicians over common patients, providing a complete overlook to minimise language barriers.\n\xa0Continue to read the Story of ResQ on EdgeRyders.\n\xa0\nBreathing Games | by Fabio Balli, Povilas and Duglas\nThe Question: \nHow to ensure that (lifesaving) health innovation benefits all?\nThe Problem: \nCompetition and copyrights hinder the free use and adaptation of health innovation.\nThe Solution: \nWe co-create knowledge and technologies that can be used and adapted by everyone, in all countries.\nContinue to read the Story of Breathing Games on EdgeRyders.\n\xa0\nAllergoKi | by Nicoletta Faltracco and Monica Zambolin\nThe Question: \nThere are a lot of people with food allergies and/or intolerances, that too often are forced to renounce to have dinner outside because they are afraid to feel bad.\nThe Problem: \nPeople with food allergies and/or intolerances feel immense embarrassment every time they have to tell their health condition.\nThe Solution: \nAllergoKi wants to create a visual/tech \u201csystem\u201d placed in the restaurants or any food court, in order to have a comfortable and convivial atmosphere for anyone.\nContinue to read the Story of AllergoKi on EdgeRyders.\n\xa0\nIn the next days we are going to meet each team, in order to set a specific schedule in terms of calendar, resources, activities and much more.\n\xa0opencare Maker in Residece | WeMake team', u'entity_id': 865, u'annotation_id': 8404, u'tag_id': 1107, u'entity_type': u'post'}, {u'quote': u'Agile kick off at WeMake\nJune the 13, 2017\n\xa0\nTogether with Chiara e Silvia, from the WeMake - OpenCare MIR team, we explored the main steps of the Agile Planning, which made us able to focus more on our project ResQ.\nFor those who are not familiar with this methodology, Agile is an effective way of working that helps teams in identifying their unique value proposition, and how to make it real.\nTherefore we went through the following steps:\n\n\n01_Why are we here\n \n\n02_The elevator pitch\n \n\n03_The product box\n \n\n04_The Not list\n \n\n05_Meet your neighbours\n \n\n06_What keep us up at night\n \n\n07_Size it up\n \n\nAs following a deeper view on each one.', u'entity_id': 580, u'annotation_id': 8403, u'tag_id': 1107, u'entity_type': u'post'}, {u'quote': u'From our point-of-view at "Makers", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an "automated manufacture pod" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.', u'entity_id': 19837, u'annotation_id': 8402, u'tag_id': 1107, u'entity_type': u'comment'}, {u'quote': u"I left Access Space just after we'd delivered an incredibly successful EU funded project: Sheffield Community Network. The project's overarching objective was to create jobs and social enterprises in the Sheffield City Region, and my particular role was to investigate the local employment potential of digital making technologies, give support to local enterprises that were investing in these processes, and help understand what positive local impacts could come out of engagement with 3D Print, Lasercutting, CNC, Digital Embriodery and so on.", u'entity_id': 14151, u'annotation_id': 8401, u'tag_id': 1107, u'entity_type': u'comment'}, {u'quote': u'The\xa0opencare Maker in Residence is the first edition of a special residency programme that provides support, assistance, resources and acceleration to Makers - from all over the world - who are interested in developing / validating / iterating an open source project in the health and care field. Makers can live and work on-site at WeMake\xa0for a period of time that may vary from\xa0minimum\xa02 to maximum 8 weeks, providing an opportunity for intense collaboration, creativity, and learning to improve their project.', u'entity_id': 6206, u'annotation_id': 8400, u'tag_id': 1107, u'entity_type': u'post'}, {u'quote': u'The new infrastructures of makerspaces (also known as fablabs or hackerspaces), allowing the do-it-yourself construction of objects, lend itself as a host for the WeHandU initiative.', u'entity_id': 720, u'annotation_id': 8399, u'tag_id': 1107, u'entity_type': u'post'}, {u'quote': u'Demonstration of an OpenCare model of a \u2018makerspace\u2019,', u'entity_id': 720, u'annotation_id': 8398, u'tag_id': 1107, u'entity_type': u'post'}, {u'quote': u'I am Thomas Herv\xe9 Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).', u'entity_id': 37182, u'annotation_id': 11764, u'tag_id': 1108, u'entity_type': u'post'}, {u'quote': u'They run a large physical space consisting of a large carpentry workshop, metal working room, co-working stations for makers, and\xa0timber warehouse.', u'entity_id': 6356, u'annotation_id': 8414, u'tag_id': 1108, u'entity_type': u'post'}, {u'quote': u'The question is if more people in the camp would share the same enthusiasm. Ideally, a craftsman could be found to take the role of a tutor to guide the others into the basics of building. On our last visit in the camp we learnt that the the camp\u2019s organizers are taking help of one of the refugees who used to be a tailor. He now has his working space (a table with a sewing machine) at the intern clothes depot and helps fixing the garments before they\u2019re given out.', u'entity_id': 703, u'annotation_id': 8413, u'tag_id': 1108, u'entity_type': u'post'}, {u'quote': u'"A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.', u'entity_id': 10361, u'annotation_id': 8412, u'tag_id': 1108, u'entity_type': u'comment'}, {u'quote': u'"Tired of waiting for a monitor for his diabetes, Tim\xa0Omer made his own. He\xa0is one of a growing number of patients circumventing medical companies in favour of a homemade healthcare revolution"', u'entity_id': 4909, u'annotation_id': 8411, u'tag_id': 1108, u'entity_type': u'post'}, {u'quote': u'Perhaps you know of agricultural and / or handicrafts products from Madagascar that are interesting for export to Europe (storable, high value per weight)? I can tell you what we have found out about direct sales of food items from Nepal to Europe. Customs etc. is very doable, and revenues for farmers will be about 200% of what they get in the traditional trading system (and even that is very high for coffee because Nepali coffee is traded as a specialty \u2026 so it can be a 400-500% improvement for some "more ordinary" coffees from around the world). Let me know if you want any more infos on that.', u'entity_id': 21834, u'annotation_id': 8410, u'tag_id': 1108, u'entity_type': u'comment'}, {u'quote': u'"In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad."\nDo you have more information about this story, @ChristinSa ? It sounds amazing!', u'entity_id': 19368, u'annotation_id': 8409, u'tag_id': 1108, u'entity_type': u'comment'}, {u'quote': u'I am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.', u'entity_id': 19544, u'annotation_id': 8408, u'tag_id': 1108, u'entity_type': u'comment'}, {u'quote': u'laboratory', u'entity_id': 720, u'annotation_id': 8407, u'tag_id': 1108, u'entity_type': u'post'}, {u'quote': u'With the creative potential, the only problem lies in the lack of tools and materials.\xa0To see what would happen if material were available, we made a little experiment where\xa0we brought basics like duct tape, cable ties, string and durable cardboard and looked\xa0what they would think of building intuitively. Despite scepticism in the beginning, it was\xa0beautiful to witness the moment when everyone in the room joined to figure out the best\xa0construction for a wall-mounted shelf, built with mortise and tenon joints. The fact the\xa0project was dealt with in such a manner, shows the willingness to engage these kinds of\xa0challenges with seriousness and a certain claim to quality and that it is not only about\xa0practicality and pure function, for such a shelf could have been easily assembled withjust tape and cardboard. It was fun for us to join the working process and thinking with\xa0them about the construction and making, but more importantly, it was fun for them to be\xa0challenged in making something useful and to make that beautifully. Mohammed, who\xa0came up with the idea of using joinery, later joked saying he would love to make such\xa0shelves for the whole camp - and we hoped, it was not merely a joke, but a mentality that we\xa0could continue to work with. In fact, we left all the spare materials in their rooms and by our next visit they had built another two shelves and a small storage for clothes under one of the beds.', u'entity_id': 703, u'annotation_id': 8406, u'tag_id': 1108, u'entity_type': u'post'}, {u'quote': u"Respected,\n\nIt is my pleasure to introduce myself. Unique experiment of nature, kind, sweet, cheerful, positive, charismatic, did I mention good looking? I have a couple of certificates\u2026\u2026and so on\u2026 curious and creative, eager to learn, to travel, have fun\u2026\n\n\xa0 I live in Serbia, the Balkans, reason enough to be interested in current events in the world and region. Turbulent past, dynamic present and an uncertain future, burdensome by intolerance and conflicts in the region, which I personally found not only unnecessary but also totally crazy, because we all have the same desires and dreams, to live freely, love unconditionally, have fun, learn, be independent, travel, have amazing adventures, the best parties \u2026. without regard to national and religious affiliation, skin color, eye color\u2026 there are too many prejudice, inequality, unprotected and vulnerable people, there is gender inequality, intolerance, social injustice, poverty, hunger, disease, non-existent or inadequate health care, problems of refugees, racism\u2026. I do not know why and I`m trying to understand. Injustice affects me terribly. We learn history in order to avoid the mistakes which were made and were pretty catastrophic, and to me it seems like we constantly repeat the same errors. I have learned not to judge in advance, that all deserve respect, a smile, a kind word, that the mind is like a parachute works only if it is open, that in the period of globalization, IT progress, revolutionary discoveries, scientific achievements, robotics, nanotechnology \u2026 we must not think about limits, all barriers and borders exists\xa0 only in our heads., I perfectly understand what it means conflict, and detest it, I hate arguing, hate conflicts. I watch the news, read a newspaper and follow social networks and\xa0 I can say there is too much violence, too much suffering, too much of everything negative, the constant threat of war, terrorism\u2026just too much. I want a better world, a better society, a better life for all, it is important to take care of others, to be open-minded. I want more, I need more, no one should be afraid for ones lives, children must not be hungry, barefoot, on the streets, women must not be abused, people should not be expelled from their homes, the world gone crazy and we desperately need all people of good will who want and have the knowledge and strength to fight, not only to philosophize and criticize, but also commit to work, to improve our society, day after day, devotedly\u2026\n\nThey tell us that as individuals we cant do anything, at least anything important, that we are still small, young and inexperienced, but adults forget, and sometimes reduces our value, ignored it, forget it under the weight of today circumstances. We are thirsty for knowledge and education, we might be weak, but snowflakes are gentle and weak until they connect, then they become strong. We need to connect, as snowflakes, the youth of the region and the world, only united we can be strong, important, perhaps adults hear us and listen. When children quarrel, they quickly reconcile because its not important to be right, but to be happy. We should accept that we do not have to agree on everything, sometimes can agree to disagree, but we have to respects others' way of life, other people's opinion, that we can discuss about everything, not argue, talking in order to generate ideas, information, positive energy.. To find the solution for all problems and dilemmas, make projects, succeed.\n\nSomehow it feels despair and uncertainty it should not be so, we are young, we have desire and we can change everything that we do not like.\n\nIt is essential to connect, and I read that nothing brings people together as well as living a happy accident, if it is true, We, all\xa0 in this region, the Balkans, we have more opportunities to be close, strong and organized than anyone else in the world, everything we've been through good and bad, sometimes on opposite sides, unfortunately, but we survived, war and killing, and we must never repeat it, we also\xa0 sang and celebrated and rejoice together, it was perhaps more sadness and unhappiness, but if there is justice in life, in future we should have only lucky days, happiness. Good neighborly relations like friendship and trust builds, slowly and gradually, all that is good and valuable in life, takes time. First we need to forgive. Forgiveness is possible only with understanding, that is why this camp is super idea, to understand together what had happened, impartial, draw lessons from history, in order to continue, this time better, smarter.\n\nThe goal is to make the world a better and more humane place, sustainable, use space in the best possible way, with full respect of nature and population needs, because that's the point of studying, find the best way to reconcile nature and society to meet human needs, give vision of the future, the objectives of the future development.\n\nEverything is connected and the problems must be considered as a system, If one part of the system does not work properly, it reflects on other parts of the system.", u'entity_id': 854, u'annotation_id': 12890, u'tag_id': 2116, u'entity_type': u'post'}, {u'quote': u"i @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.", u'entity_id': 25790, u'annotation_id': 8422, u'tag_id': 1110, u'entity_type': u'comment'}, {u'quote': u'As we navigate through different layers of space - personal, communal, public, private; physical or immaterial - we find that each has its own unique dynamic that is conditioned by ownership, access and attitudes of the people inhabiting them. How we live with one another and how we make sense of the interactions when factoring in power relations, newer arrivals, meshing of spaces or other elements that constantly challenge the basis of our relationships?\nYou can do this mission in either of two ways:\n\nImagine a person moves to your town or city and tells you that they would like to hangout somewhere where they could make new friends. Where would you send them and why? What information or advice would you give them? What knowledge or skills do you think you would have found useful to settle in faster the last time you moved to a new place?\n\nAlternatively:\n\nDo you consider yourself an indigenous person? Why or why not? Interview someone who has moved to the city or town you live in, and ask him or her about their experience of the place. How does it compare to yours?\n\nDig deeper into the topic\n\nRead what other Edgeryders are saying -\xa0Andrei\u2019s At the edges of conflict and mixed identity\xa0makes a strong point on what it\u2019s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: "hate speech on both sides [of Transnistria] is still louder than the voices of peace"\n\nGood for you:\xa0If you\u2019re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you\u2019re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother. \xa0\n\nGood for everyone:\xa0Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.\nCount me in! How do I participate?\nIt\u2019s easy!\xa0submit your contribution\xa0by sharing your story.\nIf you\xb4re not already signed in to the Edgeryders platform you can do it\xa0here. Remember to\xa0get the bigger picture on\xa0Living together.', u'entity_id': 867, u'annotation_id': 8421, u'tag_id': 1110, u'entity_type': u'post'}, {u'quote': u'As we have to exist within a framework of formal-operational rules (orange), at best early vision-logic (green), we have to establish a set of \u201corganizational-bodies\u201d to support the idea in the best way possible.', u'entity_id': 765, u'annotation_id': 8420, u'tag_id': 1110, u'entity_type': u'post'}, {u'quote': u'For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.', u'entity_id': 788, u'annotation_id': 8419, u'tag_id': 1110, u'entity_type': u'post'}, {u'quote': u'Also about wellbeing, this ties nicely to what @johncoate wrote above: need for codification (via allegiances, settling rituals/practices, social contract, decision making\xa0model or what you want to call it..):\xa0\nthere is no such thing as a perfectly inclusive space. If you try to include everyone, you\u2019ll include people whose behaviour excludes others. Community is defined by its boundaries, so the question becomes, where do we want to draw our boundaries? What behaviours do we want to include? If someone is getting close to a border, how do we want to treat them?\xa0(source)', u'entity_id': 19718, u'annotation_id': 8418, u'tag_id': 1110, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 18649, u'annotation_id': 8417, u'tag_id': 1110, u'entity_type': u'comment'}, {u'quote': u'ut I think it\'s the work that really matters, that really makes the difference. I have even been doing some work about designing "rules" for healthy, constructive human-to-human interaction. I call it Protocol, and it emerged in the context of the unMonastery prototype. If you are interested, here it is:\xa0https://edgeryders.eu/en/unmonastery/protocol-01-engineering-human-to-human-interaction-for', u'entity_id': 18271, u'annotation_id': 8416, u'tag_id': 1110, u'entity_type': u'comment'}, {u'quote': u'Do not post or respond with:\n\n"Tough love" of any description.\nGeneral uplifting or "it gets better" messages.\xa0Encouragement is\xa0not\xa0helpful unless it integrates real, personal understanding of the OP\'s feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\xa0including religion.\n\nThinking about our\xa0OpenCare\xa0brief in the making, or Pauline & Omri\'s\xa0project design: we need to\xa0signal the rules of the\xa0space somehow in order to build trust that the person sharing is in the right space:\xa0if it\'s for\xa0peer support vs if it\'s\xa0a project/solution\xa0space etc.', u'entity_id': 9633, u'annotation_id': 8415, u'tag_id': 1110, u'entity_type': u'comment'}, {u'quote': u'Hi @dfko ! Thanks for posting your session proposal draft. Your remarks about information sharing and organization connect with me, not only because being part of the international Open Insulin collab. Also because when talking to people in several open and participatory science projects over the last year, the same questions keep popping up.\nPerhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects?\nAn outcome of this workshop could be a framework you can readily use in the project, and that others can use for their projects.\nThe other part of the session can be you sharing experiences, outcomes or anything you think is worth telling.\xa0\nWhat do you think?', u'entity_id': 7889, u'annotation_id': 8427, u'tag_id': 1111, u'entity_type': u'comment'}, {u'quote': u'I\'m sorry I was confused. I listed the questions that we hoped we could address by our presentation. My question is "What is the best way share our project and our interest in working on other organizations around the world?"', u'entity_id': 15247, u'annotation_id': 8426, u'tag_id': 1111, u'entity_type': u'comment'}, {u'quote': u'For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).', u'entity_id': 6315, u'annotation_id': 8425, u'tag_id': 1111, u'entity_type': u'post'}, {u'quote': u"teach them to intervene in their dreams by using their imagination, by rehearsing a different ending for their nightmare f.ex.\nWe are all on a mission: to a certain degree we all need to become trauma specialists. First, we need to deal with our own trauma's and those of the people around us. We need to dare to feel and face our pain instead of running away from it. Second, there's too much suffering in the world as to leave its resolution to the clinical field or therapeutic setting. Therapeutic knowledge should be accessible to all of us, it should not be protected and copyrighted. Therapeutic knowledge should be alive in the world, not only in shrinks\u2019 offices. That is why I do what I do: share my knowledge about trauma with you, share insights, methods and techniques from the field of trauma healing ... so that we can all, together, ease and soften the pain in our world.", u'entity_id': 795, u'annotation_id': 8424, u'tag_id': 1111, u'entity_type': u'post'}, {u'quote': u'"EU is spending billions of euros in research projects. Consortia of research institutes and big EU companies receive huge amounts of money to produce amazing technologies. Technologies that need only a few months of work to become great, potentially life\xadchanging products. But most of them remain unused for years within the walls of the institutes that produce them. It seems absurd, but rarely does anyone undertake the little work that is required to bring top notch scientific results to our everyday lives. It is also common that researchers simply cannot grasp the direct impact a technology they create can have on everyday life, if applied in a friendly, accessible way."\nHe wanted to see it change - and so in 2012 he founded an organisation with a mission to publish and transform that knowledge into ready to use solutions. \nHe could not take it any longer. So, he and his cordial friend Vassilis (Salapatas) decided to bridge this gap between research and society. In 2012 they formed SciFY (Science For You), an Not for profit organization that does exactly this: take scientific results, and then form a community of entrepreneurs, volunteers, researchers and end users to build useful final products to solve everyday problems. And they offer them for free. To all.', u'entity_id': 528, u'annotation_id': 8423, u'tag_id': 1111, u'entity_type': u'post'}, {u'quote': u'I did other projects as well. Together with my wife, a teacher in nutrition, we did some research to reduce children malnutrition in rural zone; since many mothers cannot afford the right meals. We have created a formula using local ingredients, to help them give a balanced diet to their baby. All the work is freely accessible here (https://www.zenodo.org/record/57037/export/xm#.WcauGoxSxPY) and it\u2019s being used in our direct environment. We can help for a local problem, for 10 or 20 children, but cannot do it for the whole village. For a larger impact, it needs to be spread. We don\u2019t get the support we need to do this.', u'entity_id': 37182, u'annotation_id': 11792, u'tag_id': 1928, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 764, u'annotation_id': 8428, u'tag_id': 1112, u'entity_type': u'post'}, {u'quote': u"Dear @ybe - it's great to hear of your initiative!\xa0Following up on Noemi's suggestion - I agree that local organizations/groups/individuals on your trail could also be insightful in identifying groups in need of your services, offer insights on any cultural differences, or\xa0support you in a number of other ways (including in overcoming language barriers if existant). I was wondering if you have considered mapping your desired/planned route to facilitate connecting with local groups/individuals before you arrive - maybe a very basic online map? I think it could facilitate reaching out to people on the route and could have potential as a planning tool.", u'entity_id': 21964, u'annotation_id': 8429, u'tag_id': 1113, u'entity_type': u'comment'}, {u'quote': u'Idea is about helping blind people about the outside world\u2019s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API\u2019s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)', u'entity_id': 770, u'annotation_id': 8433, u'tag_id': 1114, u'entity_type': u'post'}, {u'quote': u"Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive\u2026.unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.\nSo we need to figure out a soft mobility map which can help us demonstrate that you don't have to stay home or take your car to the gym to work out. You can get around in many ways and keep fit at the same time.\nWe need\n\n\nnavigation for soft mobility with possibility to set limitations\n \n\nwaypoints of broad interest (not just googles shops, restaurants and gas stations)\n \n\nindications of feasibility on a user defined level (accessibility, interesting way, playgrounds, etc.\n \n\n\nWho's in?", u'entity_id': 779, u'annotation_id': 8432, u'tag_id': 1114, u'entity_type': u'post'}, {u'quote': u'The approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point:\n"wheelchair" = "no"\nWhereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects ("nodes" or "ways") in OpenStreetMap rather than to coordinates.\xa0The results are stored as a layer\xa0in a CSV file on the city\'s open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer:\xa0http://umap.openstreetmap.fr/it/map/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15/40.3509/18.1826\xa0\nThis was done by the wonderful @piersoft and fellow citizens.', u'entity_id': 19845, u'annotation_id': 8431, u'tag_id': 1114, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14204, u'annotation_id': 8430, u'tag_id': 1114, u'entity_type': u'comment'}, {u'quote': u"@Aravella_Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal.\xa0I wonder:\xa0with so many diverse community efforts,\xa0haven't there been any events\xa0where active\xa0people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?", u'entity_id': 14969, u'annotation_id': 12895, u'tag_id': 1115, u'entity_type': u'comment'}, {u'quote': u'The MCCH saves lives. Provides health care to unlucky people who have no access to public health or money to pay for private care. There are many people in this situation because in Greece access to the national health service is linked to employment. When a Greek loses work, it keeps health care for a year: if you have not found another job after a year, you lose the right to access to the National Health Service. If you get sick, you have to invent something, or die.', u'entity_id': 4913, u'annotation_id': 12894, u'tag_id': 1115, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 8448, u'tag_id': 1115, u'entity_type': u'post'}, {u'quote': u'We tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation.', u'entity_id': 804, u'annotation_id': 8447, u'tag_id': 1115, u'entity_type': u'post'}, {u'quote': u'One has to map the entirety of value chain, and interfaces to surrounding ecosystems, to form an idea of how to become sustainable.', u'entity_id': 8137, u'annotation_id': 8446, u'tag_id': 1115, u'entity_type': u'comment'}, {u'quote': u'... and great discussion. Something to think about for the second year of OpenCare. A collaborative map of waiting vs. being given health care and empathy? Nice artifact.', u'entity_id': 13062, u'annotation_id': 8445, u'tag_id': 1115, u'entity_type': u'comment'}, {u'quote': u"sort of 'google maps' scoring system of satisfaction. People could score the on a couple of dimension", u'entity_id': 12857, u'annotation_id': 8444, u'tag_id': 1115, u'entity_type': u'comment'}, {u'quote': u'Continuous mapping and connection of different private, public and third sector actors efforts into coherent shared plans that take into consideration the budgetary, logistical and political constraints within which each group is working. I can tell you from experience that is it not easy. The reason being that the incentives are aligned against it. We all agree that at the system level good documentation saves everyone time and resources. At the individual level it is more difficult to motivate the additional investment of time and effort. Where you see people doing this consistently is where it is a part of a shared culture and work ethos. To get this going you have to create the incentives for people to do additional work involved, instill the ethos, teach people the workflow and enforce it top down. Over and over. Until there is a critical mass doing it and others can share the effort of spreading and maintaining the enabling culture.', u'entity_id': 5234, u'annotation_id': 8443, u'tag_id': 1115, u'entity_type': u'post'}, {u'quote': u'Active engagement of a lot of affected people in mapping and making sense of urgent problems related to a sudden influx of newcomers in education, housing, employment/entrepreneurship, language/social skills and finance. The reason being that those affected will only get behind efforts to solve problems if they trust the people involved, and have shared ownership in the process. Part of what builds trust is if people can recognise their own perspective, language and experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: \u201cDo not put a cap on my dreams, just give me access to the tools and see what I can build with them\u201d.\u200b', u'entity_id': 5234, u'annotation_id': 8442, u'tag_id': 1115, u'entity_type': u'post'}, {u'quote': u'I was trained as an economist, and I find it easiest to think about what you do in terms of fixing a market failure. In a perfectly functioning market,\xa0the stuff that is only a few months away from being productive would be immediately picked up by somebody who spots an opportunity for gain.\xa0\nWhat do you think causes the market failure? Why is it that you can look at a paper and see the opportunity, while others cannot?', u'entity_id': 9055, u'annotation_id': 8449, u'tag_id': 1116, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 778, u'annotation_id': 8451, u'tag_id': 1118, u'entity_type': u'post'}, {u'quote': u"To me what @alkasem23 is saying has more to do with the way we spend our time and attention, the everyday decisions we make, of which many are more artificial than essential. Not to generalize of course, but materiality is definitely what makes today's West as far as I'm concerned.", u'entity_id': 18807, u'annotation_id': 8453, u'tag_id': 1120, u'entity_type': u'comment'}, {u'quote': u"I'd be more likely to put effort into the open care thing if I believed it would come up with concrete results (e.g. helping people / reducing suffering) , if it was just making a big document that got read and largely ignored, I'd feel it was a waste of time, and I think everyone will share this feeling.", u'entity_id': 10261, u'annotation_id': 8452, u'tag_id': 1119, u'entity_type': u'comment'}, {u'quote': u'Epoxy is not cheap (unless it is a day over shelf life - ask around at boat builders or wind power manufacturers, perhaps in Rostock) but it can get a lot of stuff done. If you put some glass fiber (ask the same people for scraps) on the cardboard honeycomb it becomes very strong (but only moderately so in compression).\nYou should not work where people live, and have good ventilation (wear glasses, gloves, read the fine print), but composites experience is very marketable, especially if you can work clean and precise.\nIs there magnetic stuff around (bed frames, parts of walls)? If yes you can buy a big batch of magnets (the strong ones are neodym) and use them to fix wall paper, fabric or similar. They can be pretty small and cheap and still get a lot done, also for improvised electronics.\nDo people use batteries a lot? Perhaps you can switch to rechargeable - with some help from Panasonic? You can build powerpacks for mobile electronics. A very basic kit will let you do a Repair Cafe and bring in more tools and parts (talk to Ifixit.com). A small amount of epoxy will also come in very handy there.', u'entity_id': 27795, u'annotation_id': 8455, u'tag_id': 1121, u'entity_type': u'comment'}, {u'quote': u'For (DIY) backpacks which hold a little more here is an interesting channel: https://youtu.be/q8j051J51O8?list=PLZLagqylZ3j6bLG7hwcwE28Max5Kd9ZE-&t=564 this specific version may also work with the inline skate rolls without too much work.', u'entity_id': 13409, u'annotation_id': 8454, u'tag_id': 1121, u'entity_type': u'comment'}, {u'quote': u"To speak for myself, I was overwhelmed by the high density of awe-inspiring, like-minded and congenial people on site. That was a whole 'nother level  I had so many great conversations that sparked new ideas and gave me different insight to quite a variety of different topics. Time wasn't enough to connect to everyone who attended, however every single contact was rocking my sweet socks  I cannot remember having a longer conversation with you, but now reading your kind words and about OpenVillage and Egderyders I feel I missed out.", u'entity_id': 37670, u'annotation_id': 11711, u'tag_id': 1909, u'entity_type': u'comment'}, {u'quote': u'Do I want to live a regular, somewhat boring life, or an interesting life? Can I put myself in a greater-than-life service, or do I learn to better care for myself before I care for the world? These questions have been lingering for years, and became more profound after I moved in with my co-workers into The Reef Brussels, edgeryders first home base.', u'entity_id': 36387, u'annotation_id': 11692, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'Jean: There is a desire of using new ways of technology to organize his place within the society je cherche a me socialiser, trouver une occupation profitable, mais je voudrais rester dans la marginalit\xe9. Find a meaning in his life, but stay at the edge of society.', u'entity_id': 541, u'annotation_id': 8473, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'while never addressing the overwhelming emptiness of modern life', u'entity_id': 521, u'annotation_id': 8472, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'b) phisical proximity and real realtionship', u'entity_id': 9138, u'annotation_id': 8471, u'tag_id': 1122, u'entity_type': u'comment'}, {u'quote': u'So, probably, this is the best path to making all this become "somethings serious": invest on developing as many ways as possible for people to regenerate meaning and validation for each other.', u'entity_id': 6719, u'annotation_id': 8470, u'tag_id': 1122, u'entity_type': u'comment'}, {u'quote': u'The point I want to draw from Orlov, however, is that there is a powerful and complex interrelation between how we make a living and how we make sense of our lives. The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?', u'entity_id': 493, u'annotation_id': 8469, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'The spike in mortality that accompanied the fall of the Soviet Union has few parallels in history. Between 1987 and 1994, life expectancy dropped from 70 to 64, and the group whose likelihood of dying increased most sharply was, indeed, working age men. In other words, despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.', u'entity_id': 493, u'annotation_id': 8468, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'That economic collapse can lead into and become entrenched by a collapse of meaning', u'entity_id': 493, u'annotation_id': 8462, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'these models, drawing on the strengths of networked technologies, allow for\xa0a far more meaningful relationship\xa0with his audience than was possible in the music industry of the pre-Napster era', u'entity_id': 493, u'annotation_id': 8461, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'This experience reaffirmed my sense of the power of what people can do when they come together to work on something that matters to them. In particular, talking to those involved, I was struck by how positively many of them experienced using their skills as part of the Feast, when compared to their experience in regular employment. Might it be that work that takes place outside of employment is more likely to be experienced as meaningful?', u'entity_id': 493, u'annotation_id': 8460, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'I suggest that we look for two stages in projects that might constitute effective action on the level of meaning: first, the ability to substitute for employment in providing social identity and a sense of direction; and, second, the potential for this to lead to new means of meeting practical needs.', u'entity_id': 493, u'annotation_id': 8459, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'The figure of the \u2018graduate with no future\u2019,\xa0identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov\u2019s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason\u2019s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.', u'entity_id': 493, u'annotation_id': 8458, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'that there is a powerful and complex interrelation between how we make a living and how we make sense of our lives. The consequences of an economic crisis can both lead to and be made worse by the crisis of meaning experienced by those whose lives it has derailed. If this is the case, however, perhaps it is also possible that action on the level of meaning might stem and even reverse the consequences, personal and social, of failing economic systems?', u'entity_id': 493, u'annotation_id': 8457, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'despite the material hardships of the period, it was not the weakest and most vulnerable who died in greater numbers, but the physically strong: what was most deadly about the collapse was not the disappearance of the means of staying alive, but the lack of ends for which to stay alive.', u'entity_id': 493, u'annotation_id': 8456, u'tag_id': 1122, u'entity_type': u'post'}, {u'quote': u'How can the impact of our projects be evaluated?', u'entity_id': 6427, u'annotation_id': 8476, u'tag_id': 1123, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 8475, u'tag_id': 1123, u'entity_type': u'post'}, {u'quote': u'I agree with you about the projects. Studying crowdfunding and charity there are some rules that help: people like "successful" initiative (the achievement of a specific goal that adress a specific need), to produce a somehow quantifiable contribution (for this reason the pledge should be done directly by the users) and to have some choices (this reinforce engagement part).\nI think also this model would help us to involve smaller organizations that could be more willing to support the promotion activity for fairbnb.', u'entity_id': 25049, u'annotation_id': 8474, u'tag_id': 1123, u'entity_type': u'comment'}, {u'quote': u'media innovation lab', u'entity_id': 34621, u'annotation_id': 12264, u'tag_id': 2451, u'entity_type': u'post'}, {u'quote': u'John Willibanks of Sage Bionetworks\xa0about medical\xa0data\xa0https://www.ted.com/talks/john_wilbanks_let_s_pool_our_medical_data?language=en', u'entity_id': 5491, u'annotation_id': 8477, u'tag_id': 1124, u'entity_type': u'post'}, {u'quote': u'Wow, this is great news indeed. Welcome @Eireann_Leverett !\xa0\n\nI was at that talk at 32C3. It was a real eye opener. It\'s all very good and well to make fun of the Internet of Things: my favourite is the Twitter account Internet of Shit (https://twitter.com/internetofshit), that churns out a sad/hilarious/scary gallery of smart diaphragms, Internet-connected pet feeders that starved your cat to near-death because the server went down ("It\'s literally just a timer! WHY does it have to be online? Oh, right, so that they can show me cat food ads"), and keyboards that predict your next keystroke and leak all your keylogs all over the Net.\xa0\n\nBut when you are running that stuff\xa0inside your body,\xa0that\'s where it gets a lot less funny.\xa0\n\nI love this idea:\n\npreparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\n\nA sort of FAQs, of checklist, if I understand correctly.\xa0Does it make sense to try and prototype this at one of the Open&Change events in the fall?', u'entity_id': 10583, u'annotation_id': 12897, u'tag_id': 2119, u'entity_type': u'comment'}, {u'quote': u'First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months.\n@Rune\nI think we have some miscommunication here. I\'m not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has \'similar\' issues to the issues of open source.\nOn your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by \xa0P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don\'t believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper "Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis.\nThere are many more things we might discuss about regulation, such as the FDA\'s limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM\nBy making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I\'m not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I\'m happy to provide more reading and evidence, when time permits.', u'entity_id': 26028, u'annotation_id': 8480, u'tag_id': 2119, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\xa0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references", u'entity_id': 21205, u'annotation_id': 8479, u'tag_id': 2119, u'entity_type': u'comment'}, {u'quote': u"I've met \xc9ireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content.\nThen I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff.\n\xc9ireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs\xa0on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann\u2019s years of assessing devices for security holes, they wouldn\u2019t normally be \u201callowed\u201d to investigate the security of such devices.\nThis implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable.\nI suggest you watch this great video from 32C3, where Marie and \xc9ireann tell about their journey.\nObviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it.\nBut that's not all - \xc9ireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is \u201cSafer. Sooner. Together.\u201d\nHe contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\nFinally, \xc9ireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.", u'entity_id': 712, u'annotation_id': 8478, u'tag_id': 2119, u'entity_type': u'post'}, {u'quote': u'Our project has been supported by the Fondation Pierre Fabre, which believes in our approach and that our concept could be used in Africa, where doctors lack medical imaging devices. They provide financial support and other resources - and the more we have, the faster and more efficiently we can do our work.', u'entity_id': 732, u'annotation_id': 8481, u'tag_id': 1126, u'entity_type': u'post'}, {u'quote': u'We are tied to a \u201cmodern\u201d health system that fundamentally removes our bodies from a larger physical reality', u'entity_id': 521, u'annotation_id': 8506, u'tag_id': 1130, u'entity_type': u'post'}, {u'quote': u'I would like to talk about medicalization of lifestyles. Some people call for de-medicalization, and want to rebrand anorexia or autism or amputation as a lifestyle. Where are the boundaries of \u201ca medical condition\u201d?\n\n\nFrench guy:', u'entity_id': 38811, u'annotation_id': 11742, u'tag_id': 1130, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 12900, u'tag_id': 2120, u'entity_type': u'post'}, {u'quote': u"(Common wisdom is that dentistry is very difficult and takes 7 years training, or whatever. I can see why this makes sense. It is very difficult and can get very bad results if it goes wrong, so obviously 'amateurs' should not hack teeth.", u'entity_id': 10261, u'annotation_id': 12898, u'tag_id': 2120, u'entity_type': u'comment'}, {u'quote': u'claim: doctors are equally frustrated because they are not typists or bureaucrats and wants to do what they are trained to do. Cure', u'entity_id': 11945, u'annotation_id': 8495, u'tag_id': 2120, u'entity_type': u'comment'}, {u'quote': u'Ezio: co-design process. These tools could be part of the solution. We are now a network and there could then be a network of nurses doctors etc. This discussion can in a similar way happen among care-givers? Costantino: the conversation will not be the result of this group, but of a larger group. But the network of care-givers might be not committed, skilled, or motivated to use an online tool.', u'entity_id': 5403, u'annotation_id': 8489, u'tag_id': 2120, u'entity_type': u'post'}, {u'quote': u'Here are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.', u'entity_id': 7673, u'annotation_id': 8488, u'tag_id': 2120, u'entity_type': u'comment'}, {u'quote': u"Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection.", u'entity_id': 7673, u'annotation_id': 8487, u'tag_id': 2120, u'entity_type': u'comment'}, {u'quote': u'We need raw data about how the healthcare situation is currently being managed, but from first hand sources...ie go out and ask people on the ground. How many doctors, nurses and others are currently active in caring for the new arrivals? Where are the resources coming from, is it mainly charities? Is this information already out there and is anyone aggregating information about the different intiatives providing care services to people?', u'entity_id': 5463, u'annotation_id': 8486, u'tag_id': 2120, u'entity_type': u'post'}, {u'quote': u'Also, let me know if you know\xa0professionals that are also\xa0good writers whom we can approach for writing\xa0stories in response to the themes - personal experiences and takes on the issue (example\xa0of a contribution)', u'entity_id': 15411, u'annotation_id': 8485, u'tag_id': 2120, u'entity_type': u'comment'}, {u'quote': u'It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.', u'entity_id': 15411, u'annotation_id': 8484, u'tag_id': 2120, u'entity_type': u'comment'}, {u'quote': u"They involve some interaction with the formal health and social care system, conditions as well as norms/behaviors in society at large. Can Erik and Tino's approach help us make sense of this and translating it into institutionally comprehensible language?", u'entity_id': 5479, u'annotation_id': 8483, u'tag_id': 2120, u'entity_type': u'post'}, {u'quote': u'Starting from the second half of the 20th century, developed countries switched to systems where the care providers were professionals, working for the government and modern corporations.', u'entity_id': 5510, u'annotation_id': 8482, u'tag_id': 2120, u'entity_type': u'post'}, {u'quote': u"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse\xa0effects in biotech\xa0are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The\xa0time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books).\nThis is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories\xa0from the news today:\xa0http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right.\nThe obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this.\xa0The potential of open medicine is there in the long term however.\xa0It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes.\nAnyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.", u'entity_id': 27807, u'annotation_id': 8502, u'tag_id': 1128, u'entity_type': u'comment'}, {u'quote': u'Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.\nOpen Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.\nCounter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now.\nAbout a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.\nThe general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.\nRight now we\u2019re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can\u2019t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers.\nProvided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.\nUltimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body\u2019s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet.\nAt the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we\u2019re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we\u2019re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow.\nMeanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it\u2019s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek.\nDo you have any projects in health, medicine, or biohacking that you\u2019d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you\u2019d like to get involved with? Leave a comment and let us know.', u'entity_id': 523, u'annotation_id': 8501, u'tag_id': 1128, u'entity_type': u'post'}, {u'quote': u"So looking at your crowdfunding,\xa0people not only\xa0support, but actually\xa0fund scientific\xa0research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led?\nHow long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?", u'entity_id': 10213, u'annotation_id': 8500, u'tag_id': 1128, u'entity_type': u'comment'}, {u'quote': u"Having a platform where a lot of people talk to each other and share experiences that sometimes contradict each other is a lot like a forum, and making it difficult to arrive at sound advice. What would make it into\xa0real\xa0collective intelligence is research and\xa0analysis on nutrition. This\xa0would weigh a lot more than advice from a\xa0small groups of\xa0food experts (as Rune observes\xa0below). If you ever want to go that way and structure information online\xa0into a research dataset, or wish to include this in your support raising efforts, consider Edgeryders for partnering up.\xa0Alberto just wrote about how you can use network analysis and ethnography to analise texts and reach new knowledge that as a platform manager or\xa0user you can't readily see, especially if you have contributions in the orders of thousands.", u'entity_id': 18512, u'annotation_id': 8499, u'tag_id': 1128, u'entity_type': u'comment'}, {u'quote': u"ello Ivan, what a great research project you have going on! If you can push the research further and pour it into some kind of organisation for distribution, I bet it would have a large impact.\nHow do you think you could make\xa0the tea reach the people who need it most but can't afford it, and avoid it only reaching the happy few (like\xa0the often prosperous superfood buyers as Noemi mentioned) who don't really\xa0need it but can afford it?", u'entity_id': 20937, u'annotation_id': 8498, u'tag_id': 1128, u'entity_type': u'comment'}, {u'quote': u'Hi @Michel, I\'ve harvested dandelion root to make a coffee-like drink before, and eaten the leaves and flowers. They\'re said to be good for the liver and in the past it was drunk by farmers, here in Ireland, to help maintain energy during in the winter months. I have no research to back these claims so I avoid using language stating it as fact. In Ireland we call them "wet-the-beds" which may indicate that they have diuretic properties:) They grow everywhere here, but sadly many gardeners see them as weeds and spray them with glyphosates.\nIf dandelion roots were a "cancer cure" that would be great, but I don\'t think the claim is valid without links to clear research. If that research is ongoing that\'s excellent, I\'m excited to hear more.', u'entity_id': 20554, u'annotation_id': 8497, u'tag_id': 1128, u'entity_type': u'comment'}, {u'quote': u"That's right, I have a former colleague a botanist for being exact when I was working in the raining forest on the East of Madagascar whose work with a Professor called Daniel RAMAMPIERIKA. They search and apply on plants and biogas & ecological energy since 2013. The advice on how dandelion's roots come from that former colleague. The advantage of this research is we still have pure primary forest and the good positive point is they're trying to preserve those forest by researching and working on biogas and ecological energy.", u'entity_id': 14143, u'annotation_id': 8496, u'tag_id': 1128, u'entity_type': u'comment'}, {u'quote': u"(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)", u'entity_id': 10261, u'annotation_id': 8504, u'tag_id': 1129, u'entity_type': u'comment'}, {u'quote': u"For the UK, an important question i would like answered is: 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?", u'entity_id': 10261, u'annotation_id': 8503, u'tag_id': 1129, u'entity_type': u'comment'}, {u'quote': u'Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of "grace conversation"\xa0in Damascus which provides medicine for thousands of families from excess medication at other families, and also "maoayed alrahman"\xa0which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities.\xa0In addition to internal displacement thousands of families are participating with their\xa0homes and food and many other live examples.', u'entity_id': 797, u'annotation_id': 8507, u'tag_id': 1131, u'entity_type': u'post'}, {u'quote': u"For many years, Mirjam, a hematologist, was the chief of the Pediatric Department in the oncologic ward of the biggest hospital in Romania: Fundeni. She was now long retired, but still having nightmares about kids who could not be saved. Because, you see, even though the treatment had clear indications about when and how to give the medicines, they were not always available. The doctors in her section did miracles. Curing cancer without the necessary drugs is indeed a miracle. The always missed some important dose, they could not offer the kids the standard treatment their colleagues in the West were used to. It was the communist era and everything was very difficult, even for the most important health care center in the country.\nSo when she sent me there, she knew that I would receive the best possible care, but she was also aware of the limitations of a poor system, as populated with amazing doctors as it was.\nDuring my time in Fundeni, I spent lots of time with people dealing with forms of blood cancer. I was \u201clucky\u201d: only had to buy once dexamethason\xa0for myself, but they were not so lucky:\xa0 either filling tones of papers to get the newest drugs (the usual line was: we are giving to you, but only with \u201dthe dossier\u201d), either they had to figure out how to obtain certain medication themselves.\nBut two bone morrow aspirations and numerous transfusions later, when my condition worsened, there were talks about a treatment\xa0 reserved for Hodgkin's lymphoma, Mabthera, or Rituximab. Rituximab was not approved in AutoImmune Hemolytic Anemia in Romania at that time. It still isn\u2019t.", u'entity_id': 517, u'annotation_id': 8508, u'tag_id': 1132, u'entity_type': u'post'}, {u'quote': u'I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it\u2019s Headspace).', u'entity_id': 36387, u'annotation_id': 11693, u'tag_id': 1133, u'entity_type': u'post'}, {u'quote': u'@Gehan, just a thought.. Meditation in policing? Success of Vipassana in prisons in India vs Vipasana used as punishment for prostesting teachers - this happened on the course I done after the death of Mr Goenka, bad vibe. Meditaion used as replacement for detention for kids.', u'entity_id': 25464, u'annotation_id': 8509, u'tag_id': 1133, u'entity_type': u'comment'}, {u'quote': u'We also want to provide the lowest level of basic services, which the "state" is dropping out of, and this is where the issue of health and other care interests us.', u'entity_id': 21382, u'annotation_id': 8512, u'tag_id': 1134, u'entity_type': u'comment'}, {u'quote': u'sheltered from things like homelessness and hunger in', u'entity_id': 29958, u'annotation_id': 8511, u'tag_id': 1134, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 8510, u'tag_id': 1134, u'entity_type': u'comment'}, {u'quote': u'Field work: Street Nurses takes to the streets to meet patients directly in their environment, without asking for payment. We take care of them, earning their trust, and we motivate them to take charge of their personal care and health by accompanying them to specific care facilities, by actively listening to their needs and giving them advice.', u'entity_id': 767, u'annotation_id': 8513, u'tag_id': 1135, u'entity_type': u'post'}, {u'quote': u'I would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.', u'entity_id': 30441, u'annotation_id': 8515, u'tag_id': 1136, u'entity_type': u'comment'}, {u'quote': u'Me, I am not so sure that things get done in meetings, nor that real world meetings are more likely to lead to real world actions. But your point stands: collaboration environments that are friendly to introverts are a good thing.', u'entity_id': 30315, u'annotation_id': 8514, u'tag_id': 1136, u'entity_type': u'comment'}, {u'quote': u'I responsed\xa0to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation\xa0of a person with the\xa0actual\xa0person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are\xa0nostalgia\xa0rather than\xa0replication, which is probably why concept behind the BM episode was so arresting - it sought to\xa0replace\xa0the dead rather than\xa0remember\xa0him.', u'entity_id': 22330, u'annotation_id': 12901, u'tag_id': 1137, u'entity_type': u'comment'}, {u'quote': u'I echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever "has not moved on", is "affecting others", is "bothersome" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.', u'entity_id': 25204, u'annotation_id': 8521, u'tag_id': 1137, u'entity_type': u'comment'}, {u'quote': u'I am definitely not young anymore, and I guess I am still moving within the paradigm of "mourn, then move on". Actually, my understanding is that you mourn exactly to\xa0make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.', u'entity_id': 20691, u'annotation_id': 8520, u'tag_id': 1137, u'entity_type': u'comment'}, {u'quote': u'http://www.theverge.com/a/luka-artificial-intelligence-memorial-roman-mazurenko-bot', u'entity_id': 15488, u'annotation_id': 8519, u'tag_id': 1137, u'entity_type': u'comment'}, {u'quote': u'Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn\'t go to the funeral: it still feels surreal, like she might show up at any time, and the "active" facebook account isn\'t helping.', u'entity_id': 8509, u'annotation_id': 8518, u'tag_id': 1137, u'entity_type': u'comment'}, {u'quote': u"Memorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.", u'entity_id': 11904, u'annotation_id': 8517, u'tag_id': 1137, u'entity_type': u'comment'}, {u'quote': u'Research has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to \u201cDeath Studies\u201d.', u'entity_id': 548, u'annotation_id': 8516, u'tag_id': 1137, u'entity_type': u'post'}, {u'quote': u"It's a grand idea and project. \xa0Your writeup says it started in 2012. \xa0How has it been going since then? \xa0Has it got those men to talking with each other more? \xa0I am sure it does, even if it is about the beermaking. \xa0That by itself would show it as a success since those guys aren't so alone anymore..", u'entity_id': 10198, u'annotation_id': 8523, u'tag_id': 1138, u'entity_type': u'comment'}, {u'quote': u'WHAT?\nA social enterprise beer brewing club.\nWHY?\nSt. James\u2019 Hospital,\xa0Dublin,\xa0commissioned a service design project\xa0in search of\xa0\xa0a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing\xa0the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.\xa0\nThe hospital is based\xa0in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City\'s walls \u2013 lands united with the city, but still keeping their own jurisdiction (hence "liberties"). The area\'s history is still very relevant to the health of its residents.\nBeing outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world\'s largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties\xa0is a city neighbourhood of opportunities and innovation, but its history -\xa0positive and negative -\xa0pervades. Although having undergone much urban regeneration as well as gentrification,\xa0the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing\xa0in the Liberties today.\xa0\nOn researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals.\nThe\xa0project takes its inspiration from the highly successful Men\u2019s Sheds mental health initiative whose\xa0motto is, \u201cmen don\u2019t talk face to face, they talk shoulder to shoulder.\u201d\nHOW?\nThe\xa0brewing club for men over fifty\xa0in the locality \u2013 where they create a low percentage beer brewed by locals,\xa0for locals \u2013\xa0harnesses existing local\xa0skill sets of the hundreds of Guinness factory retirees.\nThe brewing club, "Sl\xe1inte", takes it name from the Irish word for "cheers", also meaning "health". The aim of the club is to\xa0encourage\xa0more responsible drinking through\xa0appreciation of the brewing process\xa0as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin\u2019s Active Age Conference 2012.\nWith Ireland\'s craft beer market having hit\xa0\u20ac59 million in 2016 (up form \u20ac40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club "Sl\xe1inte" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health.\nUSER JOURNEY', u'entity_id': 841, u'annotation_id': 8522, u'tag_id': 1138, u'entity_type': u'post'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 8524, u'tag_id': 1139, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 12909, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Introduction and course overview\nIce breaking\nIndividual expectations\nWhat is stress?\nDefinitions\nUnderstanding the stress response (fight/flight versus prolonged stress)\nPhysical, emotional, mental and behavioural symptoms of stress\nRelation between our thinking and stress\nEffective and ineffective ways of dealing with stress\nRelaxation exercises that help to manage stress effectively \u2013 part 1\nThe impact of emotions on teaching and learning ability\nTools for dealing with disturbing emotions\nEffects of stress in educational setting\nAssessing your personal stress triggers\nChanging not resourceful strategies\nSelf-talk awareness\nRelaxation exercises - part 2\nHow can I be more mindful and resourceful in the classroom? \u2013 action plan\nSummary, course evaluation and closure\n\n\nACTIVITIES TO BE CARRIED OUT BY THE PARTICIPANT\n\nBefore\n\nParticipants will receive a list of study material prior to their arrival for the seminar along with the links for the websites which are relevant to the content of the course.\n\nDuring\n\nThe course will provide theory necessary to understand the nature of stress as well as practical tools for managing stress and difficult emotions. Attention will be given on how to implement the findings and skills in real life situations after the seminar.\n\nMethods such as debate, role play, body movement, individual mind management technologies, pair and group exercises and mini -coaching will be used throughout the course.\n\nThe methodology of the course includes learner \u2013 centered approach and utilizes self-learning methods.\n\nThe aim of the course is not to produce ready-made solutions (passive learning), but to inspire the participants to search creatively for knowledge and effective solutions which are connected with their needs and challenges (active learning). In this way the participants take responsibility for their own learning process and act as active partners of the course.\n\nAfter\n\nThe participants will be encouraged to form a network in order to continue an exchange of ideas and support one another. Up to 6 months after completion of the workshop, the participants will have an opportunity to ask for advice (via email or Skype) if they face obstacles in using the new skills or if they have any questions or concerns.', u'entity_id': 6293, u'annotation_id': 12908, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'We missed you @Woodbinehealth , welcome back. I\'m very sorry for your\xa0loss, can\'t even begin to imagine.\n\nJust this morning I was reading this @politicalbeauty/aggressive-humanism-bbff64cf4296">"manifesto" on aggressive humanism by the artistic-militant group in Berlin called Center for Political Beauty. Even their name, aside from tactics,\xa0is just so inspiring.\xa0It reminded me of you guys somehow, the grit..\xa0\n\nAutonomous mental health infrastructure:\xa0that is what I would prioritize as well for your participation at OpenVillage Festival. How would you see an interaction with the opencare community happening in brussels? in an effective way that supports your own mission. From\xa0the top of my head, priming the\xa0conversation with key\xa0questions around which we could gather initial experiences ahead of the event?\xa0or..?\n\nFor skill sharing and practical activities, @steelweaver was proposing to demonstrate an acupuncture micro clinic at the event - could we add to that something you guys want to share i.e. teaching others, body fitness classes etc?', u'entity_id': 6557, u'annotation_id': 12907, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Mary Ellen Copeland says about hope that \u2013 People who experience mental health difficulties can get well, stay well and go on to meet their life dreams and goals.\n\nI had a very happy childhood. I went to a rural all boys National School and was in a small class of 8 boys. My memories of that time are mostly of playing lots of sports and having the craic (Irish word for fun) with my fellow students. There was no bullying whatsoever, indeed bullying was something I didn\u2019t know existed until I went to secondary school. This period in my life was the classic definition of Childhood Innocence.\n\nFrom my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci.\n\nWhen I was awarded a place in Engineering in Trinity I moved to Dublin. I was unhappy with my Engineering course and after a few weeks stopped attending and instead just led a party life, drinking for the first time. I started to feel very isolated and depressed but I didn\u2019t tell my family or friends the true extent of my feelings.\n\nI recall writing very black poetry at this time and feeling a strong sense of failure.\xa0 At that end of term I formally withdrew from the Engineering course and returned to home in Galway.\n\nWhile I was in Dublin I met Deirdre who was studying the same course as me. From the first meeting we hit it off and developed a very strong platonic relationship. Even though we both would end up being diagnosed with the same bipolar label Deirdre and I never discussed mental health issues. We would go to pubs and gigs together and discuss music, poetry, philosophy and other topics. When I moved back to Galway we corresponded by snail mail, sending each other long handwritten letters and photocopies of poems and inspiring song lyrics. While we didn\u2019t discuss depression or medication Deirdre and I both were able to express to each other how black our lives could feel. I guess you could say we held Hope for each other.\n\nThat Christmas my health deteriorated and I acquired glandular fever. After a short hospital stay I returned home to suffer months of crippling fatigue. I have battled with severe fatigue ever since.\xa0 I was ill for most of that year and was idle until I won a place in Information Technology in the University in Galway. Even though I was living at home I was very happy to attend this course. I found this University more relaxed and got on very well with my classmates. For some reason I suffered a breakdown during my final term of my degree. I didn\u2019t tell friends or family but had meetings with some of the lecturers to see could I postpone my final exams.\n\nI found my mind was racing and I felt I needed very little sleep. I also used alcohol to help me relax and unwind from the racing thoughts. Since my father was Bipolar my parents recognised these symptoms and persuaded me to see a G.P. to deal with them. After a short meeting with my family G.P. he recognised the classic symptoms of mania and set up an appointment to see a psychiatrist. That psychiatrist whom I saw for 13 years admitted me to hospital.\n\nI suffer from Bipolar 1, meaning I suffer very high highs or mania, and very suicidal lows. When I get my highs medication seems to have very little effect on me. Instead it is a case of spending months in the safe confines of a hospital until the mania subsides. When I have my lows I get very suicidal and on two separate admissions for depression I have had to resort to Electroconvulsive Therapy (ECT) to treat my severe depression. There is quite a lot of controversy over ECT. I believe that it is a useful treatment of last resort. When a patient is in hospital and has been suicidal and catatonic with depression for many weeks with various medications being tried to no avail then I think ECT should be considered.\n\nIn the past 14 years since my first hospital admission I have had perhaps 4 or 5 admissions for mania and 2 or 3 for depression. Thankfully I have managed to avoid admission to hospital for the past 6 years except for six nights in summer last year.\n\nMany of us have lost loved ones to suicide. The loss is devastating. I lost my father and my friend Deirdre to suicide. My father had been diagnosed with Bipolar and suffered from the condition from middle-age. Looking back I can see the times he was manic or high, singing loudly on the half hour drive to school where he taught every day. I vividly remember during my teenage years his first admission to psychiatric hospital my Dad weeping with happiness when he was released home on leave for a few days at Christmas.\n\nDad snapped one day in school and that was the end of his teaching career. From that point on he had two overdose attempts. He had gone undiagnosed for the physical illness Haemochromatosis for many years and this aggravated his severe arthritis. My father was in severe pain. Unfortunately his Consultant gave him the news that his arthritis was so severe that he wouldn\u2019t be able to have necessary hip or knee replacements. From that point on my father lost all hope and was just biding his time, waiting for an opportunity to carry out his plans. The last time my father left psychiatric hospital for leave before his suicide he had a conversation with his physiatrist with our family present. The psychiatrist was trying to ascertain the risk of self-harm for my father when on home leave. My father said he wouldn\u2019t try an overdose again, not saying he wouldn\u2019t try another method. The psychiatrist said \u201cMaybe it will be third time lucky Liam!\u201d That statement for me sums up how detached some medical professionals can be, maybe it is how they protect themselves. After my father\u2019s suicide things are a blur. It was as if all the happy memories were pulverized. Childhood milestones, holidays, special occasions all faded away. My only remaining image of my father is him with a pained ashen face, his eyes saying I can\u2019t go on. You try to recall happy memories but all you can focus on is the finality of what happened.\n\nWhen you are feeling bad it is not too difficult to let someone else know this, however when you have lost all hope and a torrent of negative thoughts is leading you to actively plan your demise then the real insidious nature of suicide rears its head and the last thing you will consider doing is letting someone know just how lost you feel.\n\nMy friend Deirdre was very successful academically but struggled feeling the engineering course she was doing was cold and soulless. In correspondence back and over we discussed how banal many of the subjects were and did she really want to end up as an engineer instead of something with more soul like a musician or writer. Deirdre took a year out in 3rd year and worked with IBM. She did well with IBM and returned to Trinity to finish her engineering course and did very well graduating with a first class honours degree. After graduating Deirdre and I didn\u2019t stay in contact as much. A bit like my father I remember seeing her visit me when I was in the intensive unit in a psychiatric hospital in Dublin. I could tell she found it very hard to see me so unwell and I felt she must have wondered was there a risk of her becoming so unwell. Even though Deirdre had seen me in hospital she still never would discuss with me her own mental health or her hopes or fears. After many months of being out of contact with Deirdre I tried to get in touch with her. There was no reply to her phone or email address. Thinking she might have changed jobs I did an internet search for her name. To my horror I came across a Memorial website to Deirdre. Phoning her parents they confirmed the tragic news. Her father told me the story of Deirdre\u2019s last days. Deirdre has been suffering low mood and nothing anybody could do seemed to help. Worried for her safely her parents asked her to come home to Wexford to visit them, otherwise they would have to insist on visiting her in Dublin. That weekend they did everything to try to lift her mood, visiting family and friends and going to shops and restaurants. However Deirdre went back to Dublin. That Monday her mother phoned her at lunch time. Deirdre said she was going to lunch with work colleagues. However the truth was Deirdre had taken a huge overdose of medication that morning, months\u2019 worth of medication she has stopped taking. When her boyfriend returned home that evening Deirdre was dead. You can\u2019t do an autopsy into someone\u2019s state of mind. Deidre had a great job, a steady boyfriend and had just bought a new apartment.\n\nSince my teenage years I have had swings from wildly optimistic grandiose hopes to rock bottom loss of all vestiges of hope. Suicidal ideation can prosper in the absence of hope. Luckily during many of the extreme lows I just try and go into hibernation mode, having a strong belief that if I just get through the oncoming weeks and months then things will have to improve.\n\nOn one occasion for some reason I lost this faith in the future. This wasn\u2019t any kind of impulsive plan or drunken depression. Instead I gradually began to see the future without me as a part of it. I got rid of all my books, got rid of all my CDs and records. I closed bank accounts, I cancelled mailing lists. I booked an appointment with Free Legal Aid with the intention of creating a will.\n\nI didn\u2019t want to cause trouble so my plans revolved around how I could plan my demise with the minimum of pain or distress for my family and friends. I didn\u2019t want my family to have to discover me or call emergency services. So, as I thought, logically, I should get into a body-bag beside the morgue in the hospital. I would be discovered by somebody used to dealing with corpses and it would be a short move into the morgue.\n\nI find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW.\n\nI joined GROW in April 2013. My Cognitive Behavior Therapy nurse had recommended it and felt the structured approach to problem-solving would suit me. I have been a very regular attendee at meetings and have led the meetings a number of times. I also enjoyed attending the weekly coffee meetings and the regional conference. In GROW we believe in providing leadership by taking on even small responsibilities. I have a strong interest in Cinema so I took up the responsibility of organising a weekly cinema outing for GROW members. This was a great success and GROW members from all around the country were able to meet up to enjoy a regular night out. I was thrilled to be asked to present a leadership paper at the National Conference during my first year with GROW. My confidence in my abilities has increased and I gladly took on the role of Group Recorder when the position arose. Because of GROW I gained enough confidence to apply for a volunteering position with Age Action to teach IT to the over 55s.\n\nI was the facilitator of my weekly GROW group for over two years and we hold Hope for each other. Last year I took up the opportunity of attending a creative writing class freely given by Galway writer Rita Ann Higgins primarily for GROW members. Our members got the chance to have their poems and short stories published in a booklet and I enjoyed reciting two of my poems at the GROW National Conference in Galway. During the past few years I have also been involved with Advancing Recovery in Ireland (ARI). Service users like myself have been working with HSE staff, and we have been planning the introduction of Recovery Colleges, Peer Support worker positions and Consumer Panels.\n\nSoon after my initial diagnosis my psychiatrist encouraged me to get involved in mental health advocacy work. It would be 15 years later before I did this and found the benefits of it. Last year I completed 12 weeks of training with 4 hours per week work with the Irish Advocacy Network. I am now in the early stages of serving on one of these Consumer Panels as secretary, representing the views of service users in the Galway mental health area.\n\nI am a co-founder of Cos\xe1in. A wellness centre based in the city. Cos\xe1in supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cos\xe1in is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering:\n\n\nRecovery education\nRecovery through creativity\nPeer support\n\n\nThis month I completed 7 days of training to be a WRAP facilitator. WRAP is a symptom monitoring, crisis planning and self-help mental health recovery programme. It was first developed by Mary Ellen Copeland in the States and was further developed by a group of people who experience mental health difficulties.\n\nI would like to close by reflecting on an element of Recovery we define in GROW. The road to recovery is not always a smooth journey, even lately I have had very anxious thoughts which threaten to cause me to avoid or abandon enjoyable events I had planned to attend. However in GROW we say although \u201cold irrational feelings may return from time to time\u201d in Recovery \u201cthey do not change your thinking or behavior\u201d.\n\nTo paraphrase Mary Ellen Copeland I feel that I have gotten well, I can stay well and I have confidence that I can go on to meet my life dreams and goals. I have Hope.\n\nThank you.', u'entity_id': 562, u'annotation_id': 12906, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Support the Shit Show on Startnext!\xa0startnext.com/theshitshow\n\nWe have been studying it for 3 months, we have been dealing with it most of our life, we are highly aware of the importance of engaging with it but we still find it incredibly hard to talk about.\n\nPauline and I are both product design students and together with Nele and Luisa who study communications we are team UP. In the context of "Hacking Utopia", a human centered design project at the University of Arts Berlin, we are investigating mental health. This article explains our approach of boosting mental resilience and give you the chance to get involved in our project.\n\nIn our previous contributions on Edgeryders we described how we started off with the question of making sadness, unproductivity and inefficiency less shameful. We discovered two TED talks that influenced us greatly: The power of vulnerability by Brene Brown and Depression, the secret we share by Andrew Solomon. As later confirmed by the psychologists we interviewed, these talks made us understand that sharing our feelings is a key step towards mental resilience. Establishing a sustainable, personal connection this is necessary for recovery and growth. When we hide our condition, we ignore it, it becomes worse.\n\nUSER INTERVIEWS\n\nThe issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students.\n\nAs part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned\xa0that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support\xa0when everyone tries to hide their struggles.\n\nAs a result, most people\xa0don\u2019t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves.\n\nYet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence,\xa0stemming from a general lack of awareness.\n\nOUR GOAL\n\nWe want\xa0to challenge the current attitude towards psychological care. Our project tries to de-stigmatize psychological pain and make the sensitive, \'taboo\' issue of mental health more present and approachable to the public. We believe that udnerstanding and empathy is vital to provide good care for people that are suffering from emotional distress. We want to make it clear\xa0that feeling shitty is nothing to be ashamed of, but actually a very common thing. Also, we want the impact of these feelings to be understandable, so that more people can offer informed, helpful responses. When this happens, the threshold of reaching out is lowered, which in return allows problems to be addressed before they develop into serious mental conditions.\n\nINSPIRATION\n\nThere are a number of inspiring projects who deal with exactly this issue of awareness. One clever way artists are spreading awareness is over the internet. Tumblr users like Rubyetc, Beth Evans or Sarah\u2019s Scribbles have gained quite a following with their funny, relatable comics about everyday struggles. Seeing that you are not alone in your suffering can be very comforting. Recently, illustrator Gemma Correll created a series of drawings as part of an online awareness campaign for Mental Health America to visualize what #mentalillnessfeelslike. Their campaign encourages people to open up about their conditions and harvest the power of sharing.\n\nA related approach can be found in the various devices that exist to simulate old age. Suits like \u2018GERT\u2019 are designed to make the wearer feel the impairments that come with aging: stiffness and limited mobility, decreasing strength, blurred sight, muffled hearing. The concept was originally developed to enable caretakers of elderly people to better understand the needs and fears of their patients. Now, gadgets with similar effects, designed by students at Weimar University, are being exhibited at the Hygiene Museum in Dresden, allowing the public to gain the same understanding.\xa0\xa0\n\nIn general, public exhibitions are a valuable source of inspiration when it comes to reaching people and conveying information. A prime example is the \'Happy Show\', set up by design firm Sagmeister & Walsh. Verging somewhere between art and education, the show throughly explores the theme of happiness in a graphic, creative and interactive manner. Another show that encourages people to actively engage with the exhibit is Erwin Wurms \'Bei Mutti\'. Visitors are isntructed to interact the artefacts on display, effectively becoming a piece of the art themselves.\n\n\nf9e1fc54827667adbc6d98f8ac208de7_1.jpg1920x1080 577 KB\n\n\nPROJECT PROPOSAL\n\nIn order to achieve our goal we propose a combination of an interactive exhibition and an information booth. This pop-up stall can easily be set up at universities events like open days and conferences.\n\nWe will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one\'s body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three.\n\nThose who are\xa0brave enough to test our simulators will receive a positive feedback. They will get to choose between 3 gifts: Stickers that encourage everyday task such as: "got out of bad", "took a shower" and "washed my laundry" in order to demonstrate how difficult these tasks can be to certain people. They could also choose comforting cynical tea bags that they can grant a friend in need on a rainy day or shit shaped chocolate pralines to compensate for the horrors they have just been through. The exhibition will also include an interactive board in which participants can share their feelings caused by the simulators or just generally and a second board presenting useful information regarding mental issues: how to identify, approachable treatments, support groups and other solutions. The first exhibition will take place during Berlin University of the Arts Semester end\'s exhibition and we hope it will continue to other universities around berlin and even in other cities in Europe.\n\nIf you hope so as well you are welcome to join us in a number of ways:\n\n\nSupport our Startnext campaign going online July 20th! Help us fund the first ever Shit Show and enjoy our moody merchandise (link tba)\nSpread the word! Our first intention is to raise awareness of mental health issues. Please share our ideas and solutions, you might even help someone.\n\n\n(It will also be nice if you would share our Startnext campaign once it\'s up \n\nParticipate our research, tell us how you feel when you are down in our survey or just share with us your Ideas and comments. We would love to hear some feedback and improve our project\n\nPauline Schlautmann: p.schlautmann@udk-berlin.de\n\nOmri Kaufmann: omri207@gmail.com\n\nThe production of this\xa0article was supported by Op3n\xa0Fellowships\xa0-\xa0an ongoing program for community contributors\xa0during May - November 2016.', u'entity_id': 511, u'annotation_id': 12905, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Mary Ellen Copeland says about hope that \u2013 People who experience mental health difficulties can get well, stay well and go on to meet their life dreams and goals.\n\nI had a very happy childhood. I went to a rural all boys National School and was in a small class of 8 boys. My memories of that time are mostly of playing lots of sports and having the craic (Irish word for fun) with my fellow students. There was no bullying whatsoever, indeed bullying was something I didn\u2019t know existed until I went to secondary school. This period in my life was the classic definition of Childhood Innocence.\n\nFrom my first year in secondary school I was quite successful academically. Even though I was quite happy at school I found the weekends and holidays from school difficult. I would never see my classmates at the weekends or at Christmas, Easter or summer holidays. This was the start of the first time I ever felt feelings of depression. It was before the time of email, or mobile phones or social media. These times were times of complete and utter isolation from my friends. In these dismal days I used to study hard, write melancholic poetry and just postpone my happiness to when I would be finished my Leaving Cert (Irish exams) and be able to escape to a distant University. I did feel the presence of Hope. I felt I could suffer and suffer during those teenage years and that things would be better when I moved on to University. Where did my hope stem from? I was very academic and had dreams of becoming a mathematician or a poet or a political activist. I fantasised about being as prolific and brilliant as Yeats or Da Vinci.\n\nWhen I was awarded a place in Engineering in Trinity I moved to Dublin. I was unhappy with my Engineering course and after a few weeks stopped attending and instead just led a party life, drinking for the first time. I started to feel very isolated and depressed but I didn\u2019t tell my family or friends the true extent of my feelings.\n\nI recall writing very black poetry at this time and feeling a strong sense of failure.\xa0 At that end of term I formally withdrew from the Engineering course and returned to home in Galway.\n\nWhile I was in Dublin I met Deirdre who was studying the same course as me. From the first meeting we hit it off and developed a very strong platonic relationship. Even though we both would end up being diagnosed with the same bipolar label Deirdre and I never discussed mental health issues. We would go to pubs and gigs together and discuss music, poetry, philosophy and other topics. When I moved back to Galway we corresponded by snail mail, sending each other long handwritten letters and photocopies of poems and inspiring song lyrics. While we didn\u2019t discuss depression or medication Deirdre and I both were able to express to each other how black our lives could feel. I guess you could say we held Hope for each other.\n\nThat Christmas my health deteriorated and I acquired glandular fever. After a short hospital stay I returned home to suffer months of crippling fatigue. I have battled with severe fatigue ever since.\xa0 I was ill for most of that year and was idle until I won a place in Information Technology in the University in Galway. Even though I was living at home I was very happy to attend this course. I found this University more relaxed and got on very well with my classmates. For some reason I suffered a breakdown during my final term of my degree. I didn\u2019t tell friends or family but had meetings with some of the lecturers to see could I postpone my final exams.\n\nI found my mind was racing and I felt I needed very little sleep. I also used alcohol to help me relax and unwind from the racing thoughts. Since my father was Bipolar my parents recognised these symptoms and persuaded me to see a G.P. to deal with them. After a short meeting with my family G.P. he recognised the classic symptoms of mania and set up an appointment to see a psychiatrist. That psychiatrist whom I saw for 13 years admitted me to hospital.\n\nI suffer from Bipolar 1, meaning I suffer very high highs or mania, and very suicidal lows. When I get my highs medication seems to have very little effect on me. Instead it is a case of spending months in the safe confines of a hospital until the mania subsides. When I have my lows I get very suicidal and on two separate admissions for depression I have had to resort to Electroconvulsive Therapy (ECT) to treat my severe depression. There is quite a lot of controversy over ECT. I believe that it is a useful treatment of last resort. When a patient is in hospital and has been suicidal and catatonic with depression for many weeks with various medications being tried to no avail then I think ECT should be considered.\n\nIn the past 14 years since my first hospital admission I have had perhaps 4 or 5 admissions for mania and 2 or 3 for depression. Thankfully I have managed to avoid admission to hospital for the past 6 years except for six nights in summer last year.\n\nMany of us have lost loved ones to suicide. The loss is devastating. I lost my father and my friend Deirdre to suicide. My father had been diagnosed with Bipolar and suffered from the condition from middle-age. Looking back I can see the times he was manic or high, singing loudly on the half hour drive to school where he taught every day. I vividly remember during my teenage years his first admission to psychiatric hospital my Dad weeping with happiness when he was released home on leave for a few days at Christmas.\n\nDad snapped one day in school and that was the end of his teaching career. From that point on he had two overdose attempts. He had gone undiagnosed for the physical illness Haemochromatosis for many years and this aggravated his severe arthritis. My father was in severe pain. Unfortunately his Consultant gave him the news that his arthritis was so severe that he wouldn\u2019t be able to have necessary hip or knee replacements. From that point on my father lost all hope and was just biding his time, waiting for an opportunity to carry out his plans. The last time my father left psychiatric hospital for leave before his suicide he had a conversation with his physiatrist with our family present. The psychiatrist was trying to ascertain the risk of self-harm for my father when on home leave. My father said he wouldn\u2019t try an overdose again, not saying he wouldn\u2019t try another method. The psychiatrist said \u201cMaybe it will be third time lucky Liam!\u201d That statement for me sums up how detached some medical professionals can be, maybe it is how they protect themselves. After my father\u2019s suicide things are a blur. It was as if all the happy memories were pulverized. Childhood milestones, holidays, special occasions all faded away. My only remaining image of my father is him with a pained ashen face, his eyes saying I can\u2019t go on. You try to recall happy memories but all you can focus on is the finality of what happened.\n\nWhen you are feeling bad it is not too difficult to let someone else know this, however when you have lost all hope and a torrent of negative thoughts is leading you to actively plan your demise then the real insidious nature of suicide rears its head and the last thing you will consider doing is letting someone know just how lost you feel.\n\nMy friend Deirdre was very successful academically but struggled feeling the engineering course she was doing was cold and soulless. In correspondence back and over we discussed how banal many of the subjects were and did she really want to end up as an engineer instead of something with more soul like a musician or writer. Deirdre took a year out in 3rd year and worked with IBM. She did well with IBM and returned to Trinity to finish her engineering course and did very well graduating with a first class honours degree. After graduating Deirdre and I didn\u2019t stay in contact as much. A bit like my father I remember seeing her visit me when I was in the intensive unit in a psychiatric hospital in Dublin. I could tell she found it very hard to see me so unwell and I felt she must have wondered was there a risk of her becoming so unwell. Even though Deirdre had seen me in hospital she still never would discuss with me her own mental health or her hopes or fears. After many months of being out of contact with Deirdre I tried to get in touch with her. There was no reply to her phone or email address. Thinking she might have changed jobs I did an internet search for her name. To my horror I came across a Memorial website to Deirdre. Phoning her parents they confirmed the tragic news. Her father told me the story of Deirdre\u2019s last days. Deirdre has been suffering low mood and nothing anybody could do seemed to help. Worried for her safely her parents asked her to come home to Wexford to visit them, otherwise they would have to insist on visiting her in Dublin. That weekend they did everything to try to lift her mood, visiting family and friends and going to shops and restaurants. However Deirdre went back to Dublin. That Monday her mother phoned her at lunch time. Deirdre said she was going to lunch with work colleagues. However the truth was Deirdre had taken a huge overdose of medication that morning, months\u2019 worth of medication she has stopped taking. When her boyfriend returned home that evening Deirdre was dead. You can\u2019t do an autopsy into someone\u2019s state of mind. Deidre had a great job, a steady boyfriend and had just bought a new apartment.\n\nSince my teenage years I have had swings from wildly optimistic grandiose hopes to rock bottom loss of all vestiges of hope. Suicidal ideation can prosper in the absence of hope. Luckily during many of the extreme lows I just try and go into hibernation mode, having a strong belief that if I just get through the oncoming weeks and months then things will have to improve.\n\nOn one occasion for some reason I lost this faith in the future. This wasn\u2019t any kind of impulsive plan or drunken depression. Instead I gradually began to see the future without me as a part of it. I got rid of all my books, got rid of all my CDs and records. I closed bank accounts, I cancelled mailing lists. I booked an appointment with Free Legal Aid with the intention of creating a will.\n\nI didn\u2019t want to cause trouble so my plans revolved around how I could plan my demise with the minimum of pain or distress for my family and friends. I didn\u2019t want my family to have to discover me or call emergency services. So, as I thought, logically, I should get into a body-bag beside the morgue in the hospital. I would be discovered by somebody used to dealing with corpses and it would be a short move into the morgue.\n\nI find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW.\n\nI joined GROW in April 2013. My Cognitive Behavior Therapy nurse had recommended it and felt the structured approach to problem-solving would suit me. I have been a very regular attendee at meetings and have led the meetings a number of times. I also enjoyed attending the weekly coffee meetings and the regional conference. In GROW we believe in providing leadership by taking on even small responsibilities. I have a strong interest in Cinema so I took up the responsibility of organising a weekly cinema outing for GROW members. This was a great success and GROW members from all around the country were able to meet up to enjoy a regular night out. I was thrilled to be asked to present a leadership paper at the National Conference during my first year with GROW. My confidence in my abilities has increased and I gladly took on the role of Group Recorder when the position arose. Because of GROW I gained enough confidence to apply for a volunteering position with Age Action to teach IT to the over 55s.\n\nI was the facilitator of my weekly GROW group for over two years and we hold Hope for each other. Last year I took up the opportunity of attending a creative writing class freely given by Galway writer Rita Ann Higgins primarily for GROW members. Our members got the chance to have their poems and short stories published in a booklet and I enjoyed reciting two of my poems at the GROW National Conference in Galway. During the past few years I have also been involved with Advancing Recovery in Ireland (ARI). Service users like myself have been working with HSE staff, and we have been planning the introduction of Recovery Colleges, Peer Support worker positions and Consumer Panels.\n\nSoon after my initial diagnosis my psychiatrist encouraged me to get involved in mental health advocacy work. It would be 15 years later before I did this and found the benefits of it. Last year I completed 12 weeks of training with 4 hours per week work with the Irish Advocacy Network. I am now in the early stages of serving on one of these Consumer Panels as secretary, representing the views of service users in the Galway mental health area.\n\nI am a co-founder of Cos\xe1in. A wellness centre based in the city. Cos\xe1in supports people with mental health challenges in identifying and pursuing their own pathways to recovery. Cos\xe1in is peer led by people with their own experience of mental health challenges and recovery. We work in groups offering:\n\n\nRecovery education\nRecovery through creativity\nPeer support\n\n\nThis month I completed 7 days of training to be a WRAP facilitator. WRAP is a symptom monitoring, crisis planning and self-help mental health recovery programme. It was first developed by Mary Ellen Copeland in the States and was further developed by a group of people who experience mental health difficulties.\n\nI would like to close by reflecting on an element of Recovery we define in GROW. The road to recovery is not always a smooth journey, even lately I have had very anxious thoughts which threaten to cause me to avoid or abandon enjoyable events I had planned to attend. However in GROW we say although \u201cold irrational feelings may return from time to time\u201d in Recovery \u201cthey do not change your thinking or behavior\u201d.\n\nTo paraphrase Mary Ellen Copeland I feel that I have gotten well, I can stay well and I have confidence that I can go on to meet my life dreams and goals. I have Hope.\n\nThank you.', u'entity_id': 562, u'annotation_id': 12904, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u"What an interesting discussion, thx to you all. I agree that stress and suffering are part of life @noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.\xa0\n\nIn general, I think of art and creativity as an expression of oneself, an expression of our inner world, our 'being' in the world, our being 'me'. Being authentic is by definition being different from others and thus coping with judgment,\xa0 the others , the outer world goes along with it.\n\nBut I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a 'symptom' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.\xa0 This disconnection is trauma, the residu of pain. In my vision many artists are trying to 'heal' themselves through their art - redefine themselves, trying to find a way to become 'whole' again - integrate pain and trauma. Artists are often 'self-healers', they are their own therapists.\n\nWhen the self-healing fails, they might consider exploring the pain and trauma trough different glasses - those of a therapist. Thinking out of the box could help them cope better \n\nThis is the more or less classic, freudian, psychological explanation for 'artistic pain'.\n\nThere is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our 'acorn', that we are born with a 'mission', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment/youth/parents... We should instead in therapy look more for 'the inborn authenticity, the inborn self'.\n\n(If interesetd in this latter explanation: See Stephen K. Levine: Trauma, Tragedy, Therapy: the Arts of human suffering (quite a philosophical, demanding book - but very interesting out of the box view for therapists )\n\nHope this helsp as a theoretical frame @Pauline", u'entity_id': 31148, u'annotation_id': 12903, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"couple of examples of previous models spring to mind:\n\nPeople used Somatic Experiencing techniques with survivors of the Boxing Day tsunami, and with social service workers after Hurricane Katrina, with some success. Here's a nice TV spot on it being used in a group setting post-Japan earthquake.\n\n- Somatherapy was developed during the military junta in Brasil as a combination of psychotherapy, capoeira and anarchist theory. It favours use of enjoyable, play-based physical activities and emphasises placing individual mental health within the larger political context.\n\nPredictably enough, given my day job, my bias is towards body-based practices, or at least forms of psychotherapy that incorporate some aspect of physical engagement - I don't know if @ybe already incorporates these ideas in her practice, and in any case other forms of psychotherapeutic intervention are also very effective.\n\nBut the advantages of this kind of approach, as I see it, are:\n\n\nThey engage with the somatic anchoring of trauma, bringing quick results.\nThe physical nature of the practices can help overcome language difficulties, which might be useful in a scenario like Calais.\nThey can be applied efficiently in a group setting - rather than waiting their turn to speak, everyone engages in the practices at once.\nBecause individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and/or more people can be seen.\nSomatherapy in particular also emphasises the importance of group work as part of building a community of solidarity and support in the face of potentially oppressive political situations; moving beyond reliance on external care to develop personal and political assertiveness.\n\n\nOf course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.", u'entity_id': 13679, u'annotation_id': 12902, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"Hi @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.", u'entity_id': 25790, u'annotation_id': 8590, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Mental and spiritual well being such as that fostered by @Bernard "Creating situations for healthy experiences that facilitate collaborations\u201d;', u'entity_id': 6462, u'annotation_id': 8589, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'People whos lives have been battered by storms such as worklessness, depression or addiction work on demanding projects which require collaborative efforts. Some of the products are then sold through the social enterprise - their traditional wood\xa0longboats are widely recognised as the best on the market.', u'entity_id': 6356, u'annotation_id': 8588, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u"I would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the hype of burnout, people are sometimes pushed into the wrong 'diagnosis'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better.\nHow do we help people find the 'affliction' they have?", u'entity_id': 16932, u'annotation_id': 8587, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.\xa0\n\nI think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?\n\n\nhttps://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.", u'entity_id': 19695, u'annotation_id': 8586, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'An American-Egyptian, into educational partnerships on the edge and data analytics for evaluation. Helps run a mental health support programme for students, as he is enrolled himself at the online Minerva university in Buenos Aires, in a 4 years program where the first six months are in Argentina, then one gets to move in seven different countries, from US all the way to Europe and Asia', u'entity_id': 6360, u'annotation_id': 8585, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'At Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health. \xa0We have been experimenting with different projects and finding ways to build community. We\u2019ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of \u201cskill shares\u201d, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and care.', u'entity_id': 6376, u'annotation_id': 8584, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'@Alberto, thanks for the comments. \xa0While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health. \xa0At this point in NYC, there is still infrastructure for primary care and physical care within institutions. \xa0In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more "primary care" functions. \xa0But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health. \xa0In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here. \xa0We are thinking of treating acute mental health episodes, but to form the foundation for "preventative" communal mental health.', u'entity_id': 26065, u'annotation_id': 8583, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Have you, by any chance, read this\xa0https://aeon.co/ideas/descartes-was-wrong-a-person-is-a-person-through-other-persons or anything along the line, recently? There is a renewed interest in the role of social inclusion (or lack thereof) as the root rather than the consequence of mental health\xa0challenges... And I very much like that you suggest to connect the topic to reflections about the hyped citizenship income, and the nature of work. How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?', u'entity_id': 26676, u'annotation_id': 8582, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'CAPE should be a special place for members and learners to revive, a place to flourish, a place for young and old. Sustainable mental health is a result of continuous enthusiasm to our own development and a willingness reconstruct our beliefs.', u'entity_id': 765, u'annotation_id': 8581, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 8580, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'About mental health:', u'entity_id': 38787, u'annotation_id': 11884, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Why don\u2019t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?', u'entity_id': 6774, u'annotation_id': 8531, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'On the other hand, suicide prevention is more suited to community-driven solution than treating mental distress. Why? Because it\'s about someone being there at the right time, pulling the suicidal person away from the brink. This presents interestingly specific challenges.\xa0In this case we might lose some focus if we move over to "mental distress".', u'entity_id': 10741, u'annotation_id': 8532, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Mental health for the volunteers is a concern. Everyone lives on a knife-edge. Most volunteers self-finance their time working in Calais. They live frugally, stretching their money out. This means they end up living on top of each other. The warehouse team has a caravan park attached to the building. Volunteers with no money can stay there. Living up to 6 people in a caravan, with limited access to hot water and personal space. Volunteers who live in this enclave have a different experience to those who stay in private accommodation or hostels.', u'entity_id': 536, u'annotation_id': 8533, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'mplicated mental health issues"', u'entity_id': 19249, u'annotation_id': 8534, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'I have been working as a trauma therapist since 10 years. It\u2019s not an area that many psychotherapists decide to explore in their daily practice, but ever since I can remember it was the most appealing area of psychotherapy for me. And one that is highly unexplored and somehow underrepresented.', u'entity_id': 740, u'annotation_id': 8535, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u"hospitals). What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope better with traumatic events in our lives and in the world. We need to talk about trauma and pain more openly. We need to adress trauma and pain more directly, not only in the setting of a psychotherapeutical process.\nAs for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!", u'entity_id': 11020, u'annotation_id': 8536, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"Hello and welcome, @ybe ! This is a suggestive image: a therapist driving her bus into the sunset, looking for traumatized people to help out.\nI am curious as any previous attempts of dealing with trauma in groups. I know nothing about psychotherapy, but I do recall that this problem was met by army psychologists in wartimes. Too many traumatized soldiers, not enough therapists. Therapy had to be done in groups (and here is where Wilfred Bion's intellectual journey starts) . Has this stabilized into standard practice?\nAs for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?", u'entity_id': 7567, u'annotation_id': 8537, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Have you tried getting in touch with\xa0M\xe9decins Sans Fronti\xe8res\xa0for a collaboration? I was reading about them offering psychological first aid, but apparently there are not nearly enough people on the ground.', u'entity_id': 20332, u'annotation_id': 8538, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'States of mental health become symbols of individualized weakness', u'entity_id': 521, u'annotation_id': 8539, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'mom might feel anxious, stressful or panic', u'entity_id': 776, u'annotation_id': 8540, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Sometimes I feel like my friends can\u2019t quite take me seriously when I tell them how much art school is stressing me. When I hear myself describe to them what we do in our courses (like dressing up and dancing around cardboard sculptures of alien Christmas trees), I sometimes find it difficult to take myself seriously. However, as most people that work in a creative field would probably tell you, it really is stressful. Being creative is intense. Apart from the financial uncertainty and competitiveness that tend to run in these professions, the work itself is very demanding, mentally and emotionally. It is very easy to become personally invested in a project, some might even call this is a necessity. Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context?\nIn Product Design, we are constantly brought to question our surroundings, our decisions, and most importantly, ourselves. There has been a crisis point in almost any project where this turned into seriously doubting myself and hating all the work I had done. Sometimes, it led to absolute public meltdowns. To me it is a strange and uncomfortable feeling to share such intimate moments with people I work with.\nMany of my friends that study creative subjects have told me about similar experiences in their lives, particularly about struggles with insecurity and stress of varying degrees. Are these emotional strains simply an occupational hazard that we as creatives have to accept? Are they something we should embrace, something we actually need to produce meaningful work? There seems to be a romanticized idea of the tragically ailed, mad genius, based on the stories of countless artists like van Gogh or Beethoven that produced some of their best work during periods of Depression or Hypomania. Joshua Walters proposes in his Ted Talk \u2018On being just crazy enough\u2019, that those suffering from mental conditions might just be more sensitive to the world than others and that we can use our \u2018skillness\u2019 to our advantage. Many scientific studies suggest in fact, that there is a link between creativity and mental illness. One theory is that those with strong creative inclination perceive the world with a heightened awareness and tend to be more reflective and ruminate in their thoughts.\nFor me, a host of questions and problematics arise out of this. How do these factors influence people in creative fields in reaching out when in distress? At what point does these different pressures stop aiding creativity and start impeding it? What are your thoughts?', u'entity_id': 680, u'annotation_id': 8541, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'@Pauline @Alex_Levene let me know if you came across scientific studies establishing that link? I couldnt find any..', u'entity_id': 12308, u'annotation_id': 8542, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"It's been quite difficult to work out exactly what my thoughts are on this subject. I've found some of the comments below to be helpful and insightful, but some to be problematic.\nThere is certainly a strong link through poetry and literature to this idea. I've recently been reading a lot of Thomas Mann and it's almost the entire structure on which his work is predicated. There seems to have been a sensibility that was propagrated in the late 1800s -early 1900s European intellectual/artisan culture around 'bohemianism' or latterly 'bourgouise'. I think in some senses it emerges out of a combination of Romanticism (in poetry and visual art) and it's opposite reaction,\xa0Realism (in painting and literature) and the beginnings of the sentimental nostalagia-tinged\xa0classical music of people like\xa0Verdi and the German/Austrians like Liszt, Mendelsohn.\xa0\nThe 'struggling artist' becomes a trope, a series of hooks onto which musicians, writers and painters can hang their emotional responses to the world. The struggles of the artist can therefore\xa0be equated to the struggles of the working, pastoral man and woman, who often during this period are the themes on which the artist work. c.f Beethoven's 6th, Robert\xa0Burn's Poetry, Victor Hugo. Which becomes an important connection between the (usually rich, educated and entitled) artists and the philosophy of people like Rosseau and Locke who want to improve the human condition for all.\xa0\nMore of a History of Art and Ideas response to the idea, and certainly not my final views on the subject, but i thought i'd add a bit more to this already in-depth post.\nAlso, worth having a quick read of this piece i found today:\xa0http://www.the-", u'entity_id': 13417, u'annotation_id': 8543, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"you make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of\xa0these issues popping up in our immediate surrounding\xa0during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right\xa0context to explore this\xa0or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much\xa0appreciated!", u'entity_id': 21954, u'annotation_id': 8544, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Someone like me who is not a creative or art\xa0professional could simply read the emotional stress\xa0as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don\'t know.\nHave you looked into art therapy or therapeutic gardening?\xa0Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and\xa0"an old soul" (we like to joke :))\xa0might be able\xa0to offer more\xa0advice. Hang in there.', u'entity_id': 21301, u'annotation_id': 8545, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'@Maria yes! The challenge itself is around mental wellbeing, and people (like Pauline above) write about\xa0connections they find interesting or helpful\xa0projects.', u'entity_id': 24943, u'annotation_id': 8546, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst,\xa0is a sad one. I have found some solace and the begging of an understandment\xa0of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.', u'entity_id': 29064, u'annotation_id': 8547, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"Interestingly,\xa0I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such\xa0personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can\xa0frame this question of different emotional responses even more specific to the art world, we can\xa0launch a challenge so that we can bring more domain insights. Let me know, I'd be interested.", u'entity_id': 29542, u'annotation_id': 8548, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"HI\xa0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!", u'entity_id': 30608, u'annotation_id': 8549, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It\u2019s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit", u'entity_id': 32270, u'annotation_id': 8550, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.", u'entity_id': 7782, u'annotation_id': 8551, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"How can we get better as groups at learning from the experiences we go through? I have been wondering about new approaches to care and this question has been much in my mind since interviewing members of the public during a project about the \u201cword on the street\u201d in Liverpool in 2015. It was a sobering month in which I came to know personally\xa0just how disaffected and disenfranchised the public felt about anything changing for the better in England.\xa0 In a comment on the Edgeryders community call on improving\xa0how we support each others mental and spiritual health, I wondered if \u201ceveryone who lives in a distributed area is in some way involved in processing the emotions experienced in that place\u201d. I feel a great potential for technological networks to create rituals and bring people together to process experiences in new\xa0ways. Generally, I'm talking about creative\xa0networks for coming back to life: networks that invite people into a social experience to care about themselves and other people, to keep hold of their hopes, to understand beyond their own spheres of experience and to find\xa0support\xa0in being\xa0the magician of their own life. This is speculative stuff, I realise, so I\u2019ll\xa0anchor my offering to this strand in real examples and share work that I know of and am making.", u'entity_id': 553, u'annotation_id': 8552, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'It\'s such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of "distance" such as this one helpful for handling the feelings. And for sensitising others/ building literacy around how to help/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...', u'entity_id': 26051, u'annotation_id': 8553, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'In our intros we discovered most of us approach mental wellbeing in terms of how to make support more accessible - by inventoring and designing solutions, by opening up a conversation. I saw two big strands in the conversation that can inform our search:', u'entity_id': 5658, u'annotation_id': 8554, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Ever since the election in the UK I\'ve been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\xa0of what do you long for in the place where you live?\xa0I\'ve been\xa0trying out different ways of\xa0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\xa0came up again and again that a lot of people\xa0really were living through enormously challenging situations and traumas\xa0and very willing to normalise it in conversation\xa0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\xa0experiencing states that were\xa0"abnormal" or could be classed as\xa0"mentally ill")\xa0felt like a helpful thing -\xa0the urge to have one\'s experience understood unites everyone. I was thinking about networks that could help this (and thinking around\xa0digital networks - Airbnb / dating apps etc. and looked at\xa0some mental health apps\xa0)\xa0I was mostly thinking about place and the fact that it\xa0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\xa0needed stepping up to. \xa0I don\'t know of many\xa0political\xa0utopias that really take into account neurodiversity and conditions like\xa0dementia.\nThis\xa0perspective is drawn from my experience of talking to a multitude of strangers\xa0these last few months and I realise there are many many issues when it comes to mental health. But I\'ll share my naive view as\xa0I\'ve been considering the role that I\'d\xa0taken\xa0up in\xa0wandering about listening\xa0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\xa0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\xa0There is something in spoken expression, being listened to and accepted that is\xa0just vital for emotional processing. With a few technologists I\xa0prototyped some systems that used voice recordings to play back these "real" expressions to others.\xa0Again the emphasis was not on mental illness but on the similarities and the differences in the\xa0longings of the inhabitants of particular locations - the project was inspired by thinking about\xa0how it might be possible to\xa0make networks in Nepal that in some way help\xa0the expression and social processing of the shock around the earthquake.\xa0However,\xa0there had been a depth in\xa0the experience of the interchanges that had happened\xa0whilst\xa0making the recordings that were\xa0more interesting than the voice playback system. The interviews\xa0always came out of a "live" sharing of experience (ie. the interviewee\'s expeirences and my own) and involved risk,\xa0personal disclosure,\xa0agency and shared discovery in a way that listening to a recording does not.\xa0I am still wondering about\xa0digital systems that allow\xa0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\xa0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\xa0Witnessed formal\xa0statements - like rituals - can create marker points in people\'s lives.\xa0Alchoholic\'s anonymous is probably a relevant example.\xa0I wondered about the Samaritans model which sets up this sense that you can make a telephone\xa0call if you are desperate and the "Samaritan" is steady,\xa0sane and absolutely OK. I wonder about\xa0a network\xa0that simply says: whatever you are going through is part of the human experience ie. there is no\xa0broken experience, but there certainly is incredibly challenging experience. \xa0\nIt feels like a\xa0given that two people who are\xa0in grief may find solace in sharing their\xa0real experience and connecting.\xa0\xa0And yet, to generalise,\xa0Western communities often put empahsis on usefulness in society and direct\xa0those\xa0exhibiting signs of mental distress to simply "be OK"\xa0/ go on medication / fix themeselves\xa0-\xa0\xa0I totally agree with the point you are bringing out that\xa0"the community" is often woefully\xa0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\xa0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\xa0Perhaps I\'m thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\xa0that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved in processing the emotions experienced in\xa0that place. I\'m aware this is a poetic notion but I think\xa0various imaginative\xa0re-framings\xa0of the issue of mental health\xa0is what\'s needed. Maybe this would only work as a\xa0three way conversation with someone trained and with really\xa0clear guidelines around use but my thinking here is that what\'s needed is not this expert / patient relationship but two humans sharing different experiences of living in a similar\xa0place.\xa0\nMy friend Denis Ngala at\xa0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\xa0health and cultural knowledge was telling me about the work that was being done in Kenya\xa0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\xa0he was communicating\xa0was that recovery was not the problem of the victim\xa0of torture\xa0alone, but that it was the\xa0community\'s task. They were working\xa0to educate the community around how to support the individual live beyond\xa0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\xa0can be life changing.\xa0I work a lot with VR and seeing through another\'s eyes is certainly helpful but what\xa0really leads to\xa0change is\xa0honestly communicating difficult\xa0experience and listening to others and accepting their experience. There\'s some sort of validation in the honesty of that\xa0process that allows for shifts.\xa0There are lots of CBT, brain training, "look at things brighter" apps around but perhaps\xa0there\'s room for bold\xa0digital networks - with some serious legal tick boxes in place\xa0-\xa0that\xa0make possible structured honest relational\xa0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\xa0speaking in one\'s own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\xa0ways that communication can go, but\xa0there\'s a saviness emerging around\xa0structuring and limiting online\xa0encounter and creating a precise\xa0invitation that makes me think it\'s possible. Online experiences\xa0that move\xa0into\xa0relational and creative territory and away\xa0from the sense that\xa0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\xa0like winning in a\xa0game - there\'s something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\xa0being in dire straights and make\xa0it feel like it\'s worth making the epic journey back to life?\xa0Not sure, but you\'re right that there is a real need for help\xa0with\xa0processing emotions and it\'s something that a healthy culture should be able to give.', u'entity_id': 16456, u'annotation_id': 8555, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Here\'s an example of "community approach" to mental health care in Armenia. It is a tiny drop in the sea but still I am excited to know it exists here, even though it\'s rather a "provider vs vulnerable group" approach as\xa0\xa0@Alberto put it.', u'entity_id': 27794, u'annotation_id': 8556, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 8557, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u"Thank you so much for sharing your experience and your story with us. I found your words enlightening and moving. It's great to see that you feel comfortable and confident sharing with us, and that what you are doing with Cosain, GROW and these other areas are not only helping you with the day-to-day steps that are required, but are also helping to improve the lives of others around you in your community.\nMental health has been an interesting topic on Edgeryders during OpenCare. We had/are having an discussion around MH and creativity here:\xa0https://edgeryders.eu/en/under-pressure-on-the-relationship-between-creativity-and-emotional this has also led to an interesting project: https://edgeryders.eu/en/the-shit-show-a-mental-health-awareness-campaign\nIt seems to me that many people are experiencing some of the stresses and strains of MH issues (to varying degrees and levels) and that many of us are missing the knowledge or practice to be able to work through these problems. Perhaps your training and experience can help guide the community towards some practical steps to help with improving MH for all of us.", u'entity_id': 7098, u'annotation_id': 8558, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'It is very important for social, psycological health to change the environment we are living in. Current living environments are a cause for all kinds of problems. So we want to encourage you to design new community and cooprative spaces for living and working.', u'entity_id': 20801, u'annotation_id': 8559, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'This is a beautiful story.\nIn an effort to save on rent, some Dutch college students are living at nearby nursing homes. In exchange for 30 monthly volunteer hours, the students get free housing in vacant rooms.\nIt seems to be a win-win for everybody. Not only are the students living in better accommodations than student housing and not racking up as much student debt, but they\u2019re providing a better quality of life for the eldest residents by socializing, helping them with tasks, and teaching them\xa0tech-savvy skills like using email, social media and Skype.\xa0The bonding created from spending time together is incredibly important for everyone. Social relationships are key\xa0to human well-being and in the maintenance of health.\xa0The intergenerational living model started in 2012, with a few more nursing homes follow. \xa0Regular social interaction is necessary for mental health as well as social interaction.\nRead the complete story here: \xa0https://goo.gl/LYUpPP', u'entity_id': 809, u'annotation_id': 8560, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u"When we arrived to move into the house, we seemed like an unlikely crew. There were three lads living there already - Kieron, Dave and Billy. Kieron was the leader. He had a drill. Billy was very pale and very thin - kind of morose somehow while at the same time desperately optimistic. He looked like he hadn't seen a vitamin in months. Dave on the other hand, was just mad. At this point, quite obviously, even certifiably, mad. Just a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. They say what doesn't kill you makes you stronger, but I'm not so sure I believe them. Dave's approach was to break out of the place and find himself a squat to live in with a couple of mates and several total strangers, one of whom had been recognised by Kieron from a free party, when they bumped into each other down at the job centre. Its amazing what gets hatched down at the job centre, and I'm not talking about anyone finding a job. But anyway, when we turned up at the squat, Dave was living on the sofa in the lounge in a haze of ashtray cigarettes and cheap cider, eyeing the curtains nervously and never far away from a large knife. You got the feeling he was pretty keen never to go back inside that place if there was anything he had to say about it. And he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either. Dave seemed to be doing pretty well as far as I could see, considering everything that he'd gone through so far in his life. He told me his Dad was always drunk and often violent. He said his mother had been killed, shot by a farmer standing in front of her dog trying to protect him while out for a walk. That was when he left home. He'd had a job as the look-out for a gang of thieves that robbed industrial units at the age of nine. A little later he'd gone to live with a family of Irish travellers who'd trained him to be a bareknuckle boxer, a discipline at which he was apparently quite talented. Some time after that he'd bought a house, back when they gave mortgages to people with no job, no credit rating and no intention whatsoever to make even a single repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment. \n\xa0\nOn the one hand, Kieron and Billy were quite happy to have Dave and his knives living on the sofa. After all, this was a squat, and you never know what might go down. Sometimes you have to defend a place, and while Kieron liked his drill, that was about the limit of his handiness. And if anything serious went off you'd most likely find Billy in a cupboard. So Dave had his uses. And anyway, they were mates. But in this condition, he wasn't exactly easy company. So naturally, Billy and Kieron started to pal up a little. They shared a floor in the house with a kitchen in it, they went outside from time to time. They liked to get stoned together, and have a laugh. But this was unsettling to Dave somehow. He'd been mates with Billy for years, since the time he bought the house. He had no family left, no real friends after all the alcoholism, the drugs, the crime, and the madness. Billy was about all he had. And now he was feeling him drifting away. It all came to a head one full moon. It 'd been building for a while. You could feel it all through the house, under the neon strip lights in the corridors. Tension. The more Dave got wound up, the more Kieron and Billy retreated into their little flat. Sometimes you could hear him shouting incoherently in the lounge on his own. It wasn't very reassuring. But on this particular night, we found him shouting slightly more coherently, and it wasn't at himself. It was directed at Kieron. Dave was pacing the lounge, muttering to himself, wild-eyed. Then suddenly, something snapped. He grabbed his largest knife from under the cushions of the sofa and stormed out in the direction of the stairs. Larissa, sharp as ever, phoned Kieron fast and told him to lock his door. She was just in time. \n\xa0\n'Yer fuckin big gay bastard! Open t'door.' \n\xa0\n'Fuck off Dave' said Kieron, with his foot set hard against the door to keep his demented friend from getting in. \n\xa0\nIt wasn't looking good. Dave was stabbing the door repeatedly with his enormous blade, while Kieron, who fortunately for him liked to eat a hearty meal, was leaning against it with all his weight. \n\xa0\n'Open t'door or I'll fookin kill yer both'\n\xa0\nIf I open t'door, that's when you'll fookin kill us both, was more what it looked like. \n\xa0\nThe rest of us were gathering downstairs in the lounge. We'd known these people a week, and this was the only place we had to live. We were not ecstatic about the situation. And besides, we were worried, as much for Dave as for Kieron and Billy. We really liked Dave. He was a lovely lad, underneath all the addictive behaviour, the paranoia and the threat of imminent violence. I'd had a good connection with him from the start. We both had Irish ancestry. We shared a dark sense of humour. Dave's kind of funny was to make unbelievably hot curries, knowing that Billy didn't like them, but that he had no money and that there was no other food in the house. And then to watch Billy eating them, as his face got redder and redder, and his expressions grew ever more absurd. That was like Dave's perfect joke. So anyway, I headed up the stairs, with Dom close behind. The stairwell was pulsating, neon, harsh light. Nowhere to hide. Kieron's door was closed now, with the giant knife stuck in it, wobbling, and Dave half-shouting half-sobbing, desperately scared of losing his friend, his mind, his freedom. I wondered about his family history, and how much comprehension he had of his own emotional reality. It can't have been easy for him. And I thought about my own safety. But however erratic he'd been acting, I didn't feel any kind of malicious intent would be directed towards me.\n\xa0\n'Dave, Dave. Dave man, it's me.'\n\xa0\nDave was in his own world, and it was breaking down.\n\xa0\n'Dave, what's up man? Why don't you put the knife down?'\n\xa0\nHe kicked the door a couple of times, just desperate now, more than dangerous. My heart broke for him.\n\xa0\n'Dave, you're bleeding mate! Look. Let me see that hand.'\n\xa0\nDave looked at his palm, which had been cut by the knife as he had rammed it repeatedly into the door. It wasn't serious, but it was badly enough to make a fair mess. The sight of his own blood seemed to bring him back to himself. All the fight had gone out of him now. You could see he was ready to be taken care of.\n\xa0\n'You should get that seen to Dave. You want me to come with you mate, we'll go down to the A&E dept at the bottom of the road?'\n\xa0\nHe let me lead him away, still staring at his bloody palm, and I placed my arm around his shoulders as Dom discretely removed the knife from the door and hid it out of sight. The crisis it seemed, was over. At least for now. But still, we had an evidently pretty broken human being on our hands, and what the hell were we going to do about that?", u'entity_id': 502, u'annotation_id': 8561, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does \u201ereal\u201c self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?', u'entity_id': 666, u'annotation_id': 8562, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'I am a member of the Inaugural Class of Minerva Schools at K.G.I., as well as Minerva\u2019s, Mental Health Services Programs Coordinator for Berlin and Buenos Aries. Which sounds great, but seriously, what the heck does that even mean?\nMinerva is a new university that aims to reimagine the paradigm of higher education, based on the science of learning. All classes are seminars, with a flipped classroom structure. Meaning that we students, learn the content on our own and spend time engaging with the deeper concepts behind the material. Moving the emphasis away from the professor teaching and instead towards students learning.\nAll of this is facilitated by Minerva\u2019s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students. \xa0\nThis unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students\u2019 mental health and wellness! Minerva students\u2019 have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities.\nAccessibility of Resources:\nIn the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late.\n\nThis has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues?\nThe answer is Cultivating Care through Community!\nThis is where my work comes in. As a student working on the school\u2019s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.\nIn addition, it\u2019s no longer enough to focus solely on the counseling department\u2019s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed.\nThe Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their \u201cMinerva Talk\u201d, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.\n\xa0\nWhile we still working on figuring out a lot of how we address student well being (and build this university) it\u2019s become clear that the future of student care must be holistic and not just reactive.\n\xa0\nI\u2019m curious to hear your thoughts and also what you are working on! Please connect with me or comment below.', u'entity_id': 724, u'annotation_id': 8563, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'I was doing a little research the other day into this group called WeCommunities \xa0for health professionals - they organise dedicated regular twitter\xa0chats\xa0and \xa0a recent one\xa0was "What is it like being a student mental health nurse?" They have it all archived should you want to have a look. I myself need to learn more about how it works, but it seems like there is a need for coping and sharing lessons as a professional too.', u'entity_id': 7096, u'annotation_id': 8564, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"This project was developed during Hacking Utopia - a three month course on product design for social and demographic change. The course format was developed by Prof. Susanne Stauch (@Susa) \xa0and Nadia EL-Imam (me) in a partnership between UDK (Berlin University of the Arts) and Edgeryders:\nThe Shit Show is an interactive pop-up exhibition designed to make the sensitive, 'taboo' issue of mental health more present and approachable to the public. Psychological struggles are still stigmatized, making it hard to reach out for help. We want to offer an alternative way for people to engage with the topic and develop mechanisms for support and resilience.\nMental illnesses are one of the most widespread disabilities worldwide. In Germany alone, 4 million people are affected by issues like anxiety or depression. Yet, it\u2019s a secret we all share. Seeking help for psychological struggles is still strongly associated with shame. Even being sad or stressed or unproductive is seen as personal weakness. As a result, many people find it difficult to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder.\nIt\u2019s easier to open up to someone who has similar problems and can empathize. But how to identify the people that can offer support when everyone tries to hide their struggles? Most people that are in emotional distress don\u2019t decide to seek help until they have been in increasing pain for a prolonged amount of time. Only about 35% of people suffering from depression are receiving treatment. On average, 11 months have passed before even these few seek out professional help. The Shit Show is one approach towards addressing this pressing situation.\nThe students : Omri Kaufmann, Pauline Schlautmann, Luisa Weyrich and Nele Groeger are in here so you can contact them directly) (@Omri_Kaufmann , @Pauline , @LuisaWey and @NeleG )...\xa0I know they're very passionate about the topic, and would love to bring this initiative to other Schools and Universities. They're even running a crowdfunding campaign to finance the costs involved. Perhaps there is room for collaboration", u'entity_id': 26034, u'annotation_id': 8565, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"I was reading this article and thought you might find it informative - results from a study on Irish students from 22 universities saying that a third go through mental distress and less than 1 in 4 look for support. So worrying. I'm now trying to get hold of the original study.\nA mental health community initiative in Ireland that we know of is\xa0Cosain\xa0- a an organic healing centre by peers of all ages,\xa0running as a prototype\xa0in the city museum! - curious what you think.\nAlso new in the conversation since you were last online - a volunteer led organisation running twitter chats on mental health. Definitely check them out, maybe you can do something together as they are always looking for hosts!", u'entity_id': 27808, u'annotation_id': 8566, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'i would like to give you a reference of soemthing big which lasted for many decades and had a solid scientific background and support. it is much differnet from your project but in some way it was aimed at showing and trating mind problematic people (sorry for my english) to a different open normal way:\na big area (ex psichiatric hospital) transformed into a living community with srvices and cultural events partially manged by people which woudl ahve been reclused.\nhttp://www.olinda.org/cittaolinda/paolo-pini\n\xa0\ngoogle should help in putting into english', u'entity_id': 27798, u'annotation_id': 8567, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'I think the work you are doing is great. I am an anthropologist who studies young people\'s practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm).\n\nIt strikes me that the language of "shit happens" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all.\n\nIt would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!', u'entity_id': 24338, u'annotation_id': 8568, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'I really enjoyed reading this article and I find familiar to me some\xa0of your influences (the Tumblr users, I\u2019ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don\u2019t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this \u2013 like I am).\nThanks for sharing this and good luck with it! What are the next "challanges" going to consist of? Let me know if you need a young girl\u2019s opinion. I\u2019m really interested into this subject and I would like to give some help.', u'entity_id': 14581, u'annotation_id': 8569, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'I was lonely for most of my life, I don\'t have\xa0anything too complicated with my family and I had a few friends while growing up but I\'d never let anyone in. I had never exposed myself or talked about my feelings. As time went by I got better and better at it. A very good listener my friends called me. Even today I still find myself shifting the subject of the conversation whenever it gets to me.\nI tried to act like I was Ok, or maybe I was just not aware. I had an eating disorder and a sleeping disorder and it got pretty bad at some points. Almost every night I\'d stay in bed awake waiting\xa0for my family members to go to sleep, then I\'d storm the fridge eating like 4 hungry people, go back to bed feel horrible and couldn\'t fall asleep.\nI lived like that for many years, sometimes it was better sometimes worst. I can\'t tell what drove into seeking help but around the age of 22 I told my mother I think I need help. She was very happy that it came from me rather than her as she was thinking the same.\nI started\xa0going to therapy. It took me nearly 4 months to gain the trust I needed to open my heart but with time my therapist and I became closer and through our conversations I slowly began to understand what my life was missing: love, family and friends. Yeah I\'ve had my loving family, a few friends and a number of short romances but none of it real because I didn\'t allow it to be, I\'ve never been me.\n4 years later I\'m studying industrial design and doing Erasmus in UdK Berlin.\n\nAs part of our human centered design course "Hacking Utopia", my partner Pauline and I are focusing on the challenge how we might boost each other\'s mental and spiritual resilience. After posting here story to Edgeryders, our team member Nele was recommended in a comment to watch Brene Browns Ted talk, The Power of Vulnerability. We have found it so inspiring, it was exactly what we were talking about.\nAt the moment we are trying not to have any idea of how our product will look like so that we can have a neutral research and hopefully a surprising result, but we are looking in the direction of a design intervention that will encourage people to be vulnerable and share their feelings with their loved ones.\n\nBoth Pauline and I went through therapy and we both agree that what was missing in our lives was the ability to share our difficulties with our close ones. We discovered that both of us had to use objects in order to speak to our therapists. I had to put a cushion over my knees and Pauline was always keeping her hands busy by playing with hair bands or ripping pieces of paper, avoiding eye contact.\nWe were wondering whether you might have made any similar interesting experiences/observations to share with. Do you feel comfortable sharing your feeling with others? Can you get people to open up to you?\nWe are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time.\nAlso, if you have any other Ideas, thoughts, articles, projects, products or whatever you think can inspire us further please let us know.\nThank you so much for reading so far,\nTeam JUS.\nP.s. - We really liked this short video and wish we could make a sofa that feels as good as the hug in the picture above.', u'entity_id': 678, u'annotation_id': 8570, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'"Some may call it depression. Let\u2019s say I am wary about medicalisation of the human condition, so to me it is just sadness.\nWhen I was younger these dips were more profound. Debilitating even. At some point a psychiatrist prompted me to take medication. I refused, opting instead to deal with what I thought might be the root causes\u2026.by\xa0changing my profession, lifestyle and social environment.\nEventually\xa0I developed some resilience towards these\xa0inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don\u2019t have on having a shrink try to figure out what is the matter with me\u2026and how to fix it.\nLast week, the sadness returned. This time I am unable to find solace in the work. I am unsure as to why. It is not dramatic and there is no cause for alarm. However, I\u2019ve noticed that the less time I spend on online, the better I feel. In part I think it is because\xa0communication for work purposes and to stay in touch with people about whom I care increasingly happen in the same channels. Which is not sustainable in the long run. So I am leaving Facebook, Twitter and linkedin for now. I will not cancel my accounts, but will not be checking them on a regular basis or keeping them updated.\nIf you wish to stay in touch with me you have several choices:\n1) To be kept up to date with information about Edgeryders, unMonastery and future projects and opportunities I am involved in building, subscribe to Nadia at Work.\n2) If you are interested in reading me on more general topics like culture, tech, politics, art, religion, science, travels and life in general, subscribe to \xa0News from Nadia.\n3) If you want to hang out you can always call me on skype (my alias is: niasan) or come visit me in Brussels, where I now live.\nI do hope you will choose to stay in touch one way or another. To those of you who choose otherwise, thank you for the time we have spent together- I do wish you all the best and hope our paths cross again sooner rather than later.\nWith love,\nNadia"', u'entity_id': 18288, u'annotation_id': 8571, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"Long before I was finally diagnosed with depression 1 year ago, I struggled with intense feelings of stress and self-loathing, feelings that were overwhelming me, because I could not really understand what and why I was experiencing. I consider myself privileged to be born into a comfortable middle class life, to have a supportive family and friends, no academic problems. In theory, I was supposed to be happy. So why was I feeling so paralysed and helpless? Considering there are so many people who have it much worse than me, feeling sad seemed irrational, unjustified and shameful.\nEveryone around me seemed to manage just fine, effortlessly juggling scholastic and social expectations. So I thought it must be my fault that I was barely holding it together. I was ashamed to admit that I was struggling and ask for help. When I finally gathered enough courage to talk openly about my problems with my friends and family members, I was stunned how much it resonated. Once I had shared my troubles, many of them would admit some of their own. These were people that I had known for more than 10 years, people that I thought I knew inside out, suddenly telling me about insecurities of theirs that I never even suspected them to have. Such moments of connection were a very special experience.\nHowever, at times it was also exhilarating. It's not easy for either party.\xa0Opening up, even to the people I trust most,\xa0took a great deal of mental effort. Then, I didn\u2019t know how to properly express what I felt. And they didn\u2019t know how to react. I didn\u2019t know what kind of reaction I was hoping for. I didn\u2019t want to burden or worry anyone. How often did I find myself alone in my room bawling my eyes out, finally calling my mother or my best friend, just to hang up 5 minutes later even more frustrated and miserable and guilty than before. They were only trying to help me to the best of their abilities, but somehow all well-meant compliments and advice only made me feel worse. I didn\u2019t think they could truly understand me and it was so difficult to communicate what I wanted to say, when I didn't even\xa0really know what that was myself. When they tried to relate their own experiences to mine, it felt like they were comparing a broken arm to a papercut. When they were trying to give me tips on health and well-being, it felt patronizing, as if I didn\u2019t know and try that already. This was nothing that doing a round of Yoga or 8 hours of sleep or being more social could simply \u2018fix\u2019. Just thinking such things added to my guilt and shame, because it was like I was taking their attempts of help for granted. Devils circle.\nWhat helped me most in the end wasn\u2019t necessarily talking about anything in those situations. Discussing these things with a neutral person such as a therapist was a much better framework for me to sort out my thoughts without the added complications of emotional attachment. The greatest help for me was just someone being there and giving me a hug. Telling me that they know it sucks and just sharing a little bit of the suckiness in that moment.\nEDIT:\nHow do\xa0you deal\xa0with emotional issues? In what situations do you share\xa0your thoughts with others? How does this make you feel? What might prevent you from seeking support?", u'entity_id': 677, u'annotation_id': 8572, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u'This was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical)\xa0well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on\xa0mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.', u'entity_id': 11003, u'annotation_id': 8573, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'This doesn\'t have to be a \'full-blown\' mental illness, but any thing that has weighed on them emotionally.\xa0\n@Moushira suggested yesterday in our community call that engaging people to share their issues shouldn\'t be put under headers of "mental health" but under something more like "emotional health". Similarly, \xa0@Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness\xa0can contribute to lowering the threshold as mentioned above.\nGuys, next Monday we are hosting an online\xa0conversation about emotional care, feel free to join in at 4:30 PM.\nPS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.', u'entity_id': 12389, u'annotation_id': 8574, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"I think the wording is a good point. Mental health\xa0to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available\xa0out there,\xa0how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further.\nI'm looking forward to the online discussion on Monday, thank you for setting it up!", u'entity_id': 12885, u'annotation_id': 8575, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment.\nAs a first contact, the university counsellor\xa0was a good help. However, the number of appointments one\xa0can have with them\xa0is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time\xa0until they\xa0find someone they feel comfortable with.\nI saw\xa0a doctor too, which did some tests to see that\xa0there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.\xa0\nWhen you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy,\xa0this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning\xa0point where you decide\xa0that something needs to happen, that you need some kind of help now, because you don't know what to do anymore,\xa0and then you are told that the next possible appointment is in 8 weeks.\xa0\nWhat am I going to do until then? Is it possible to somehow\xa0improve this process? What kinds of\xa0other temporary support structures might there be\xa0that could help\xa0people in distress?", u'entity_id': 15782, u'annotation_id': 8576, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u're: my observation above. I was just listening to one of my favourite podcasts Invisibilia, and their latest episode talks about mental health patients and alternatives to\xa0failing recovery systems all over the world. Like some here already intuit, meaningful help can come from\xa0supportive community environments (interesting examples from a\xa0town in Belgium called Geel where families host "patients" for decades!, or\xa0housing sites in NYC with 40% mentally ill people living among the others).', u'entity_id': 13011, u'annotation_id': 8577, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u'There was distress tolerance, learning how to improve coping skills, groups range in\xa0diverse areas.\xa0 Workshops were topical with a therapeutic focus and the students realized they were helping each other. Encouraging open and frank discussions while getting to the core. As a psychology student, we started a group with the focus of awareness of mental health and resilience (it started as a project) For students by students -showing support is beneficial to manage the inevitable ups and downs and the resources available. \xa0Mental wellness was brought into the light \u2013 which it\u2019s ok to talk about it. From there the students that were not really \u201cinterested\u201d took another look at the options available with a different perspective.', u'entity_id': 27824, u'annotation_id': 8578, u'tag_id': 2122, u'entity_type': u'comment'}, {u'quote': u"What people experiencing mental health difficulties need most is to be shown compassion, empathy, a voice, to be listened to, to be believed in, somewhere to go where they will be given hope of a more meaningful life.\u2019\nCos\xe1in Community Wellness is a recent\xa0initiative to develop a peer-led community-based support system for people with emotional distress and mental health issues, and to promote wellness for all. Cos\xe1in is the Irish word for \u2018pathways', reflecting our belief in different paths not single roads, and the guidance, wisdom and support that we can find in the stories of each others individual journeys. All quotes within this article are from research performed by Galway Mental Health Services Consumer Panel, the local representative body of mental health service users for the geographic region.\nGMHSCP advocates for supports and services which are fit for purpose from the perspective of service users, and the integration of users of services into the design, \xa0development and delivery of services, working in partnership with the Irish Health Services (HSE) based on the value of our lived experience of current systems of care, and the evidence of our own healing processes.\n\u2018The most effective help I have experienced over the years, having had years of medication, psychotherapy, hospitalisation, is the support of peers, where I am treated as normal, with kindness, not judged, and not expected to conform to the medical model of treatment.\u2019\nWhere progress was slow or absent within the system, we took\xa0it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because\n\u2018it's a community based project concerned with 'well-being' which is preparing fertile ground for the empowerment and transformation of people, individually and as a group. It's organic growth reflects the personalities and desires of the people involved, making it of and for the people.\u2019\nOur belief is that properly resourced and equipped communities can provide more effective intervention in cases of crisis,\xa0care in a more person-centred and human manner, and both at a lower cost than the dominant acute-oriented, clinical and biomedical approaches. We believe that only approaches that are grounded in local communities and emerge from their dreams and aspirations\xa0can meet the needs which we are presented with in the time that we have.\n\u2018My experience of large organisations is that the individual gets lost in the system and become just another number\u2026 I\u2019m sick and tired of waiting for the HSE to offer people the support they want\u2019\nWe also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of\xa0autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions.\n\u2018Being with people who are doing whatever we can to have our lives the way we want them, seeing the evidence that people can succeed, that we can make a difference \u2013 all this has a positive effect on my own mental health, self-esteem and my ability to shape my life the way I want it.\u2019\nWe developed our initiative over the course of the Galway 2020 Bid process, using \xa0participatory design exercises that brought together a range of groups and individuals including\xa0independent therapists,\xa0health professionals, service users and patients,\xa0and other interested parties who are seeking to develop new models of community-based health promotion and care.\xa0We then used the blank canvas of a disused city building, visioning and combining elements of artspace, green makerspace, and wellness supports that were brought together using the concept of an\xa0integrated cultural and community hub. During this time we came into contact with EdgeRyders and the Opencare research project, and welcomed the opportunity to form productive partnerships at European level with groups and initiatives with similar ethos.\nOur current operating model exists with the support of Galway City Museum, who have provided us with the use of a room one day a week for prototyping and co-design. This is taking place as part of the Galway City Cultural Strategy, which seeks to use \xa0cultural resources and infrastructure for wellness supports and public health.\xa0These sessions were an extension of the earlier co-design process, deployed in a real-life environment for feedback from stakeholders and re-design. Our sessions to date have included artistic and creative process, peer support and educational sessions, based on the demand from service users.\xa0\nCurrently delivered on a volunteer basis for proof of concept, our intent is to progress towards a cultural space and \u2018crisis cafe\u2019 on a social enterprise model, with a welcoming cafe-type front-of-house drop-in space that can be used as an open studio and learning space, with a supportive backstage of more intensive interventions, therapies and supports for those people in emotional distress. Our model is grounded in the value and authenticity of provision of supports and services that are delivered by people with the direct personal experience of the situations in question, and the expressed need based on our research for appropriate creative outlets that support emotional wellbeing and generate meaning and community for the participants.\n\u2018in Irish culture mental health tends to be seen as a failing by an individual, of an individual, in an individual. This attitude views the natural processes of emotional distress and recovery through a lens of pathology, individualised blame, guilt and shame.\xa0In contrast, rather than attempt to seek what Zygmunt Bauman called \u2018individual solutions to collective problems\u2019, an impossible task, we felt the need for the sake of our collective sanity, to use an approach based on collective support and interdependence.\nOur story is just beginning.", u'entity_id': 757, u'annotation_id': 8579, u'tag_id': 2122, u'entity_type': u'post'}, {u'quote': u"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It\u2019s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit", u'entity_id': 32270, u'annotation_id': 8597, u'tag_id': 1141, u'entity_type': u'comment'}, {u'quote': u'fields in which creativity is profoundly linked with identity will always make for a more stressful environment. And for those that already identify with the psichological pressures of creativity, this later layer might be just too much to handle.', u'entity_id': 32092, u'annotation_id': 8596, u'tag_id': 1141, u'entity_type': u'comment'}, {u'quote': u"There is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our 'acorn', that we are born with a 'mission', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment/youth/parents... We should instead in therapy look more for 'the inborn authenticity, the inborn self'.", u'entity_id': 31148, u'annotation_id': 8595, u'tag_id': 1141, u'entity_type': u'comment'}, {u'quote': u"HI\xa0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!", u'entity_id': 30608, u'annotation_id': 8594, u'tag_id': 1141, u'entity_type': u'comment'}, {u'quote': u"Interestingly,\xa0I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such\xa0personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can\xa0frame this question of different emotional responses even more specific to the art world, we can\xa0launch a challenge so that we can bring more domain insights. Let me know, I'd be interested.", u'entity_id': 29542, u'annotation_id': 8593, u'tag_id': 1141, u'entity_type': u'comment'}, {u'quote': u"you make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of\xa0these issues popping up in our immediate surrounding\xa0during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right\xa0context to explore this\xa0or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much\xa0appreciated!", u'entity_id': 21954, u'annotation_id': 8592, u'tag_id': 1141, u'entity_type': u'comment'}, {u'quote': u'Sometimes I feel like my friends can\u2019t quite take me seriously when I tell them how much art school is stressing me. When I hear myself describe to them what we do in our courses (like dressing up and dancing around cardboard sculptures of alien Christmas trees), I sometimes find it difficult to take myself seriously. However, as most people that work in a creative field would probably tell you, it really is stressful. Being creative is intense. Apart from the financial uncertainty and competitiveness that tend to run in these professions, the work itself is very demanding, mentally and emotionally. It is very easy to become personally invested in a project, some might even call this is a necessity. Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context?\nIn Product Design, we are constantly brought to question our surroundings, our decisions, and most importantly, ourselves. There has been a crisis point in almost any project where this turned into seriously doubting myself and hating all the work I had done. Sometimes, it led to absolute public meltdowns. To me it is a strange and uncomfortable feeling to share such intimate moments with people I work with.\nMany of my friends that study creative subjects have told me about similar experiences in their lives, particularly about struggles with insecurity and stress of varying degrees. Are these emotional strains simply an occupational hazard that we as creatives have to accept? Are they something we should embrace, something we actually need to produce meaningful work? There seems to be a romanticized idea of the tragically ailed, mad genius, based on the stories of countless artists like van Gogh or Beethoven that produced some of their best work during periods of Depression or Hypomania. Joshua Walters proposes in his Ted Talk \u2018On being just crazy enough\u2019, that those suffering from mental conditions might just be more sensitive to the world than others and that we can use our \u2018skillness\u2019 to our advantage. Many scientific studies suggest in fact, that there is a link between creativity and mental illness. One theory is that those with strong creative inclination perceive the world with a heightened awareness and tend to be more reflective and ruminate in their thoughts.\nFor me, a host of questions and problematics arise out of this. How do these factors influence people in creative fields in reaching out when in distress? At what point does these different pressures stop aiding creativity and start impeding it? What are your thoughts?', u'entity_id': 680, u'annotation_id': 8591, u'tag_id': 1141, u'entity_type': u'post'}, {u'quote': u'It just dawns on me as I read the example you are giving: as we prepare to write a paper on going from online interactions to collaboration of sorts with Federico, Ezio & co., we are in fact collaborating in the very process set out by opencare. So the very approach in writing\xa0the paper is a testimonial\xa0to its core\xa0argument. This is turning into very advanced research analysis', u'entity_id': 20179, u'annotation_id': 8599, u'tag_id': 1142, u'entity_type': u'comment'}, {u'quote': u"The potential goes beyond that well into actual research. Coupled with the use of the Edgeryders platform, it's valuable as\xa0digital infrastructure to manage a research project, a way of setting up a 'meta' research regarding the process, an analysis tool to see if there is actual merit to a participatory process, and a way for pouring everything\xa0into hard conclusions.", u'entity_id': 14733, u'annotation_id': 8598, u'tag_id': 1142, u'entity_type': u'comment'}, {u'quote': u'Quite a few curious people who participate in the OpenCare conversation\xa0about care\xa0end up engaging with the research team in a different conversation: the one\xa0about OpenCare as a research project.\xa0This is a lovely\xa0side effect of OpenCare\'s radical transparency. We practice a sort of open notebook science.\xa0We don\'t publish only results, but also questions, doubts, within-team disagreements, half-baked ideas. This is made more effective by a specificity of OpenCare:\xa0the community and the team are in separate "rooms" of the same online platform, edgeryders.eu. People who hang around it\xa0can\'t help noticing the stream of research project updates. Some of them engage.\xa0\n\nThis was expected. But I was not expecting the magnitude of the effect. 81 people have contributed at least one comment to the research team space. The team\'s own numerosity fluctuates, but it\'s about 20. The others are just people from the community who drop in to ask questions or make suggestions. And they outnumber us three to one.\n\nIn the network diagrams, nodes are color- and size coded by in-degree. You can think of in-degree as a measure of the interest that the person\'s contribution elicits in the conversation. By this metric, it is clear that self-selected community members who just jump in\xa0are making a major contribution to the OpenCare research effort. The highest in-degree individuals who are not affiliated with any of the partners are @Federico_Monaco (ranks 7th by in-degree), @Rune (ranks 13th) and @Francesco_Maria_ZAVA (ranks 16th).\xa0\n\nThe conversation about\xa0OpenCare as a project (to the right of the picture)\xa0is of the same order of magnitude as that about open care as a potential pathway to societal well-being (to the left). It needs to be said, however, that the former has a lot of menial content: agreeing about a time and place to meet, requesting administrative information etc. \xa0\n\nWhat are the consequences of all this activity? More diversity in research. More space for participation. With a bit of luck, more and higher quality scientific output.\xa0My favourite story is this: a community member, the already mentioned Federico Monaco, has proposed we do a paper together. He had found a call for papers in a journal he follows, and thought it a good fit. His proposal stirred the rest of the team into action. His thread received over 50 comments. A\xa0draft abstract was then uploaded onto a public wiki\xa0for community scrutiny and feedback.\n\nMany people sent contributions large and small. The large ones (example: that of\xa0Ezio \u2013 here) did most of the heavy lifting. But the process had a role also for smaller ones. People like myself, who did not feel confident to step in as co-authors, were able to offer some small help\xa0without having to take responsbility for the whole thing. Federico led with a firm but light touch, asking everyone who volunteered any thought what role they wanted to play in the paper. For example, @Yannick \u2013 also\xa0not\xa0a member of the OpenCare team \u2013 was offered co-authorship (but declined). All of this happened out in the open. As you\xa0read the whole thread, you can see ideas form through the discussion of the co-authors. Collective intelligence about collective intelligence!\xa0\n\nInterdisciplinarity happened quite naturally as a result of the open process. The final submission listed five authors: Federico himself (a medical anthropologist); @Ezio_Manzini (a designer for social innovation); @Noemi (a social scientist); @Amelia (an ethnographer); myself (a network scientist). How cool is that?\n\nAnother advantage of doing things this way is increased accountability to the people who take part\xa0in the main conversation, the one about care. Through the research team forum, they can ask question and make proposals. This should mitigate the perceived risk of researchers taking an exploitative attitude towards people\'s contributions. The operative word here is "perceived". We have the best intentions, but we recognize this is not enough. We are determined to demonstrate them to the community, and transparency goes a long way towards doing it.\xa0\n\nI think that, together, we are making OpenCare... open. I had never had the luxury of running a research project with such transparency. I like it a lot, and hope to keep doing so in the future. What do others think?', u'entity_id': 6175, u'annotation_id': 12919, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u'he Milan consortium meeting taught us that bringing the offline debate online is hard. So far, we have followed\xa0two different approaches:\n\n\n\n\n\xa0ScImpulse, WeMake and City of Milano focus on an engaging offline experience for participants. Conveners take notes, photos etc. They then editorialize them and upload them onto the platform.\n\n\nEdgeryders focus on offering people with good stories help for them to put them on the platform. Workshops are organized not by Edgeryders itself (though we do take part), but by active community members. The same also provide most of the help.\xa0\n\n\n\nBoth methods are hard. Both have drawbacks.\n\nThe first method is mostly failing. It is difficult to make sense of notes taken during the meeting. I had this experience during "Taking care", where I volunteered to take notes with Cristina. Afterwards, I could interpret my notes, but not hers (though we were using the same \xa0Google Doc! ). I imagine the opposite was true for her. Many notes never make it online. Those that do take the form of a report: "A said this, B said that". The community tends not to engage with this type of format.\xa0\n\nThe second method has given better results.\xa0\xa0Still,\xa0it discourages people who are not good communicators in writing, face language barriers etc.\xa0\n\nHow to move forward? The Milan meeting gave us two promising leads.\n\nThe first one was offered by @costantino and @alessandrocontini . They pointed out that the mechanics of makers collaboration is not so social. You go to the forum, ask a question, get a pointer, solve the problem and move on. It may be difficult to track it through an online forum.\n\nThe second one results from\xa0something interesting that happened during "Taking care". This: people in the Bordeaux group at some point felt their contribution was unnecessary and possibly unwelcome. They withdrew from the workshop and moved to a different room. They kept working on opencare, but in the form of writing code to look at the conversation.\xa0\n\nThis resonates with an Edgeryders\xa0conversation thread\xa0that predates opencare.\xa0It says this: the "meeting"\xa0or "assembly" format claims to be inclusive, but in fact it is not. Instead, it rewards extrovert, confident, even narcissistic personalities. Introverts don\'t like to speak in public,\xa0certainly not without thinking things through. So they never speak. This issue has come to the fore in the hacker community, where many skilled developers identify as intros. Intros like online, where they can take time to think things through, and where they do not have to interrupt others to claim space.\xa0See for example\xa0this great comment\xa0by @trythis\xa0and the thread that comes with it. As a result, offline spaces are exclusionary. They do not know it...\xa0because they exclude\xa0the people who never speak up.\xa0\n\nThe post-it workshop format has a\xa0second potential problem. It has no space for\xa0contributions\xa0in\xa0forms other than the speech (as Cicero describes in\xa0De Oratore). The role of facilitators is to "standardize" contributions. Some people (like @Noemi in "Taking care") feel that this negates serendipity and predetermines results.\n\nIf this is true, a lot of design-based methods of engagement have a serious flaw. What\'s worse, an\xa0unacknowledged\xa0one. Given their popularity, this is serious.\n\nSo, I propose we\xa0"go deep", doing research and producing one or more papers on:\n\n\n\n\n\nAn ethnography of makers collaboration. How important is the space? How important is StackOverflow or similar? What constitues "good" collaboration (Alessandro: "the less interactive and more efficient, the better")?\xa0\n\n\n\nA model of the interface between online and\xa0offline collaboration. We promised to build this anyway in the proposal.\n\n\n\nA critique of the post-it workshop as a technique for collective intelligence.\xa0\n\n\n\nAll of this should, in my opinion, have a design perspective. I propose that @Ezio_Manzini coordinates the activities and writes one or two papers under items 2 and 3.\xa0ER would be happy to support this.\xa0And I would love to see WeMake and ScImpulse appoint an ethnographer to look into item 1.\xa0\n\nThoughts?\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentbringing offline content online\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 6069, u'annotation_id': 12918, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u"- image based comments (you take a picture of a sketch + a few words and upload that instead of text), this also allows participation of e.g. illiterate people and complements the predominantly text form data.\n\n\ntry to allow for a very simple yes/no answer function.\nanother common use case will be 2-3 lines of context explanation and a link (lots of data/info possible with little input)\n\n\nI would love to see hashtags integrated (https://www.drupal.org/project/hashtags) into the #platform at some point as that would allow to restructures conversations. As far as I understand we can use them already - they just don't work yet.", u'entity_id': 25646, u'annotation_id': 12917, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u"Talk to me excercise:the point of the excercise is that there are some implicit information about care.\xa0The group slit up in 3 people groupsone people ask question\xa0one people answer questionone people is documentingeach session is 20'", u'entity_id': 5405, u'annotation_id': 12910, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u'@Alberto @MassimoMercuri\xa0[Je n\'ai pas r\xe9sist\xe9 \xe0 faire ce mauvais jeu de mots ...]\n\nMy guess is you don\'t see value in sentiment analysis because up to now you have been able to track almots every and each of the users, and probably every and each post/comment on edgeryders.eu -- this is no surpirse, it\'s your job as a community manager!\n\nWhat if the community grows, what if the volume of excange makes it so that you cannot afford to track each individual or post?\n\nMaybe "sentiment" is not the good way of thinking about how to use this technology. And maybe, it\'s true, sentiment coloring is not that useful.\n\nLet\'s give it a second chance.\n\nWhat if, on top of the topics that people discuss, I can tag some posts/comments as being "opinions", "knowledge sharing", "second", "contradict", etc.?', u'entity_id': 25117, u'annotation_id': 12920, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u'I would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care\xa0priorities in a whole different light. Or the layers you mention ("opinion" "contradict" etc). But if you have an ethnographer analysing the more in-depth\xa0conversation, isn\'t that\xa0covered?\xa0@jimmytidey is involved in\xa0mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes?\xa0http://localnets.org/', u'entity_id': 33416, u'annotation_id': 8648, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u"We have mentioned it would be interesting to provide sentiment analysis feedback to those who would monitor conversations taking place on the forum.\nI am interested in finding an appropriate sentiment landscape, I thought the experiment by C. Healy would be worth trying. You enter words, the app scrapes twitter for you and then\xa0displays a cloudpoint (points correspond to tweets). Go play!\nI am also interested in your feedback about the utility of such a viz. How would you intuitively use such a represntation? Just look at it? Drive the navigation between posts (here\xa0tweets) from that viz? Query the posts and get back to the authors' neighborhood (in the crowd of all authors)? Etc.", u'entity_id': 5440, u'annotation_id': 8647, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u"Technically, it's pretty clear. You'd create your own project on Edgeryders. You have a forum and some other basic functionalities (tasks, documents, wikis). We would code your work using OpenEthnographer, and change the APIs so that your (coded) conversation is added to GraphRyder. This way, it\xa0becomes part of the OpenCare study. Insight produced would pertain to design/social science (what is collaboration for you, how it differs from collaboration in other OpenCare projects, how the group works as a group). They would not, I am afraid, pertain to biology!\xa0\nSocially, it's not clear at all what would happen. Maybe nothing. Maybe OpenInsulin Global \u2013 like OpenCare \u2013 will find itself with 80 people participating in your group. This could be another source of insight: gauging how interesting what you do is to others. For me the degree of active interest in OpenCare was a real surprise!", u'entity_id': 27407, u'annotation_id': 8646, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u'This is great! I\'d love to delve deeper.\xa0I\'ve got a good intuitive understanding of what you\'re coding, but I\'m not familiar with the practicalities and limitations. Thinking out loud here, I\'m wondering if we can somehow run part of the\xa0Open Insulin research (or any lab research for that matter) on the platform and analyse that. What insight could it produce and how? Ping @trythis and @dfko .\nIn your case, you have a blanco somehow with the "team only" conversation. It allows for some crude conclusions. I wonder if you can refine the insight somehow. An other possibility: how would a blanco look if you ran this on a random research project? Run an algorithm on a classical lab diary and an open lab diary on a highly similar research topic, with types of contributors etc. taken into account? This and other options seem\xa0unpractical as the format of classical research is not very compatible. Does anyone have any ideas?\nOn the matter of "the crowd": this is prevalent on so many levels. Going against this is at the core of why\xa0we do what we do in science communication and engagement. The narrative is always "the public" and "science" as seperate entities. This\xa0vocabulary already skews everything at the base. There\'s always some form of elitism, paternalism, laziness in justifying research, general lack of insight in the role of science in society and so on. Even, and most\xa0harmfully, from those that work in the exact departments dedicated to "linking\xa0science and society", often unintentionally.', u'entity_id': 27222, u'annotation_id': 8645, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u'Citizens were asked to engage into collaborative dialogue on the future of care in Greece, using the World Caf\xe9 method. Participants were divided in two groups and shared ideas on different and multi-level care structures. People from one group swapped with the other, in oder to cross-polinate their knowledge which was later harvested to reveal interesting connnections between different aspects of care.\nThe new paradigm focuses on synergies at different levels, putting emphasis on notions and ideas that bring people together, build trust, strengthen relationships in communities. From the level of housing,\xa0neighbourhoods and\xa0schools, all the way to managing structures of public health and social care. Interesting ideas were shared from participants, for example how we can train care stuff in novel and specialised approaches such as "preventive" mourning. Others talk of the need for communal spaces in blocks of flat, where residents can share tools or creative moments, enhancing social interaction in the buildings they live.\nFor the participants, the future of care innovation\xa0is closely connected to openess and the availability of public space. Not surprisingly, many people appreciated the power of urban gardening in offering green spaces, but also in building a sense of community in the neighbourhood.', u'entity_id': 736, u'annotation_id': 8644, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u'I will start from Alberto\u2019s post last two lines:\xa0\xa0if considered useful, I would be happy to wrote something on\xa0\u201cBuilding gateways between online and offline engagement\u201d\xa0(I am not sure to understand which activities should I coordinate but, I am sure, some explanations will follow.\nHere few first thoughts/feedbacks on the Alberto\u2019s post (more will follow).\nPremise 1:\xa0if the Milano\xa0consortium meeting taught participants that \u201cbringing the offline debate online is hard\u201d\xa0and that there are at least, \u201ctwo different approaches\u201d, it means that this meeting and workshop have been successful (as a matter of fact, at least of what the workshop was concerned, its goal was exactly to trigger a conversation on this point).\xa0\xa0\nPremise 2:\xa0I understand that the OpenCare research asks for promoting on-line discussions on the issue of open care and, then, measuring, representing them as graphs and discussing these results.\xa0\xa0NB:\xa0writing\xa0OpenCare\xa0I refer to\xa0this specific research\xa0\u2013 writing\xa0open care, I intend the issue of open caring activities in general (as I did in previous posts).\n1.\xa0Alberto is right saying that the two different approaches he indicates emerged in the workshop conversations.\xa0\xa0But, in my view, these two approaches are of quite different nature, and cannot be proposed as polarized answers to the same question.\nIn fact, in general terms, the issue of care can be the subject of a wide range of conversations:\n\n(A) some conversations aim at solving specific problems (we can call them \u201cvertical conversations\u201d, generating \u201cvertical projects\u201d);\n(B) other conversations aim at creating environments\xa0\xa0where other, vertical conversations can emerge and be enhanced (we can call them \u201chorizontal conversations\u201d, generating \u201chorizontal projects\u201d).\n\n2.\xa0In this framework, I would rephrase the two approaches emerged in the workshop, and the related questions, in this way:\nApproach (A)\n\nopencare issue: (A.1): how to deal with, and possibly solve, specific care-related issues in an open way (for what regards both processes and results).\nopencare issue: (A.2) how much of this open result-oriented activity can be done on-line and, therefore, how much measurable conversations can be generated.\n\nApproach (B)\n\n\nopencare issue (B.1): how to engage in useful discussions on-line people who are interested/active in care-related issues.\n \nopencare issue: (B.2) how these on-line conversations can be triggered and supported and, finally, how much measurable conversations can be generated.\n\nIn my opinion, both (A) and (B) are relevant and should be considered, for the sake of the OpenCare research, the focus has to be on the point 2 (A.2 and B.2).\nNB but\xa0\xa0it must be observed that there would be no need to have (B) if \u2013at a given point - it would not generate (A)\n3.\xa0I think that, for the sake of both open care and OpenCare, we should have a third level o in our questions, that is:\n\nA.3/B.3 what are the advantages, in terms of care giving, of having rich on-line conversations like these A.2 and B.2 ones? How to make them more effective in practical terms and more capable to create a new culture of care?', u'entity_id': 19944, u'annotation_id': 8643, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u'Storytelling is also what I argued for, to Costantino and Alessandro in Milano: someone that translates what makers dont have the time into an accurate entry about their work. This is in less citizen journalism and engaging documentation that goes beyond note taking. While your\xa0citizen journalism idea is another way of adding a personal voice to the online conversation, the requirement for a structured research like OpenCare is that it needs to capture more viewpoints of more people who are in an offline environment. So a storyteller would bring their own, and incorporating\xa0some\xa0other points. What about the rest of the points which in our data strategy need to be attributed to\xa0distinct\xa0users?\nSo what I recommended was a storyteller that plays the interviewer at the event, in a similar way that Natalia interviewed people on skype in OpenandChange and posted their stories in their name and language.\xa0\nMy assumption is that almost anyone, including a technical person, would be able to articulate even half baked ideas about how they work if asked pertinent questions over a friendly, informal conversation.\n@Alberto I especially like point 2) modeling online-offline. Sign me up for that.', u'entity_id': 17100, u'annotation_id': 8641, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u"Hey,\xa0\nI read a peace lately , in french, about bringing back the 'journalisme flaneur', a person between a tourist (in the broader sence of the word)\xa0and note taker.\xa0\n\nThe way that person looks at an event is different, he or she is trying to give a sence to what he or she is seeing at the moment while moving between the conversations, it's a less objective note taking, but a richer experience for the reader i think.\xa0\nAnd to link it with the offline , i think we need the same kind of person, a storyteller more then a speaker. Somebody that make a story live through his experiences. The term 'conteur' in french is the best word to describe that.", u'entity_id': 14343, u'annotation_id': 8640, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u't LOTE4 and LOTE5 we used the concept of "community journalists", semi-organized note-takers. It worked like this:\n\nPeople volunteered for the Documentation Team (LOTEs are "no spectators event", you have to volunteer for something to get a ticket).\xa0\nA team leader would set up Hackpads or other repositories for notes. Important: these need to support real-time collaborative editing, so a wiki like you have on wikimedia or edgeryders will not work.\nThe team would have its own briefing on the morning of the first day. People would sign up for the different sessions, trying to cover them all. They would also receive some format indications. A format I personally used is attributed first person quotes. Example:\n\nBEN \u2013 I went through a serious burnout period two years ago. Something that seemed to help was temporarily deactivate my Facebook account, because it took away the anxiety from being constantly poked and drawn back to interacting with others. \xa0\n\nIn session, everyone would be encouraged to help with note-taking, but the documentation ream members took the lead. That made it easy for people less confident with note-taking to chip in maybe just a little, adding some points here and there or even just correcting typos.\nAfter the session, everyone was encouraged to go to the hackpad and make corrections as needed. If my point of view was misrepresented, I could correct for it. If you don\'t correct, it means you are OK with it ("open").\n\nI imagine a documentation team could be guided to produce notes that make more sense from an ethnographer\'s point of view.\xa0\nNotice that this is NOT storytelling, nor journalisme flaneur... though those are valuable too. First person narrative are preserved, at least when the community journalist do their\xa0job well.', u'entity_id': 10953, u'annotation_id': 8639, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u"A lot of what you say in the second half of this post makes sense but is very much outside my field of understanding or activity.\nI was stuck by some of the thoughts in the first half around creating content from discussions and events. Is the perhaps an area where an overlap with the citizen journalism scene may yield results. People are invited to participate in the event as a 'journalist' (distinct from a note taker), the objective is the try to capture the essence of the event, the connections between people and ideas etc (I'm thinking of the posts from @Yannick \xa0at Re:Publica -\xa0https://edgeryders.eu/en/blog/republica-what-i-learned-about-cities-as-open-systems-political)\nThere is still an important space for note takers and people who try to capture the detail of what hapens and is said, but this is attached to a narrative or story that engages the audience.\nWith regards finding ways of bringing intros into offline conversations, i'm not sure if there is a comfortable and efficient way of creating a solution withour being overly prescriptive about how an event or discussion is structured. One could pre-organise a series of questions that you want to answer and post them in a digital space so that whilst the discussion happens people can aso engage online to think of answers. But i worry that you start to dictate the flow of conversation too much in the offline world. It's a very difficult path to tread.", u'entity_id': 7056, u'annotation_id': 8638, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u'Idea for discussion: OpenCare.CC could provide a \u2018hub\u2019 for triage of people seeking OpenCare solutions and who to contact', u'entity_id': 26917, u'annotation_id': 8637, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u"I quite like that the 'obsolete comments' remain in the system. Every few weeks i spend a day digging through the old projects, conversations etc on the site. It helps me see how things have developed and where the issues have been. I gain a much greater understanding of the path, the battles and the 'big picture' when i get lost down the old blind alleys and dead ends.\xa0I think if we moved to a position where we only showed the finished product and not the working out we are giving a false impression, plus i imagine it would have negative impacts on both the 'openness' and the ability to analyse and extract quality data from the platform. But i wouldn't know anything about that specifically as i'm not a computer network scientist. I'm a poet and creative producer.", u'entity_id': 25333, u'annotation_id': 8636, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u'To do this, we study result-oriented conversations. Conversations are networks: people are its nodes, and the exchanges are its links. It you don\'t believe us,\xa0click here to explore the Edgeryders conversation network (allow a few seconds for the data to download). But conversations are networks also in another sense: each exchange contains some concepts. Example of concepts useful in care are: well-being, syringe, diabethes, fitness, prosthetics, etc. We can represent concept in a conversation as a network. Concepts themselves are its nodes; two concepts are linked if\xa0they are in the same exchange.\xa0\nPerson-to-person conversation networks tell us who is talking to whom. Are there individuals who act as "hubs"? Why? Can we use hubs to improve the process, for example asking them to spread important knowledge?\xa0\nConcept-to-concept conversation networks tell us how the different concepts connect\xa0to each other. Are there surprises? Do apparently unrelated concepts tend to come up in the same exchanges? Anomalies might mean something interesting is going on. In fact, spotting anomalies is how John Snow\xa0invented epidemiology in 1854.\xa0\nThe fascinating part is this: by looking at the network, we can extract information that no individual in the network has. The whole is greater than the sum of the parts. Collective intelligence!\xa0\nHow\nWe look at conversation data taken from Edgeryders and\xa0build them into a network. We use open source software for network analysis. We then visualize\xa0and\xa0interrogate the network to see what we can learn. Our final aim is to prototype methodologies for extracting collective intelligent outcomes from conversations.\nOne great output from the workshop would be to unleash our imagination, and\xa0specify design & requirements:\n\nWhat views works best? It\'ll be useful to build it as a mockup if we do not already have it -- use color pens, paper, clips, cardboard and build it into a mock-up!\nFor what tasks? Do we need to move things around? Pile them up to trigger comparison of things on-the-fly? Lasso an item to trigger some computation? -- use post-it notes, cut and paste pieces of paper, draw arrows to turn tasks into real actions (on a screen!).\nUsing what ingredient (data)? What should we feed the system with to accomplish these analytical tasks? -- write them down, cut & paste, associate them with specific tasks, embed them into views.\n\nThe workshop is a unique opportunity to have a design participatory workshop -- we want it to be a source of inspiration to design and build the next generation EdgeSense dashboard!', u'entity_id': 5260, u'annotation_id': 8635, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u'I\'ve toyed a lot with the idea of having two-stage events, where the travel becomes part of the (optional) first stage. For example if we meet somewhere in/around Athens for the second stage, you can have a distributed first stage start in Izmir (and continue on the ferry to Athens), or on/around some of the airports that fly into Athens (may not be the best example as air travel is very fractured time, unlike train or ferry). Just a thought.\xa0\nAlternatively one could try to do 1-2 prior hangouts where we use Edgesense (and of course human input) to either stirr the pot, or find close matches (as people prefer). If feel like meetings can be far more helpful if we already warm people up beforehand and not go in "cold turkey". Also, people who cannot attend physically can still help with the hangout organizaton - and can try to partner up with an "agent" who will be attending physically.', u'entity_id': 13483, u'annotation_id': 8634, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u'Why', u'entity_id': 5260, u'annotation_id': 8607, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u"Instead of going up, going big I'm trying to go down, go deep, focus on a small group of people, without drawing a line around them (because then you'd loose the openness).", u'entity_id': 5403, u'annotation_id': 8606, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u'Alberto believes he has a narrative, a strong hypothesis. Collective intelligence. Small scale collective intelligence. Problems are local, resources are local. So if we have a permanent think-tank on a platform and a cheap way to harvest from it, then we have a tool for a local community to use. You can identify the emergent groups of experts on specific topics and look at them rather than having to make a large scale study.', u'entity_id': 5403, u'annotation_id': 8605, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u'Deep conversation, rather than big data.', u'entity_id': 5403, u'annotation_id': 8604, u'tag_id': 2123, u'entity_type': u'post'}, {u'quote': u"I had used the 3-person 'storytelling' approach before (possibly at another LOTE?) but I really found it effective here. Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection. So this was a nice chance to gradually eke out insights from our collective experience, we started on a relatively basic level and then by the end we had covered a lot of ground, a sense of trust and intimacy was developed we got into some very interesting questions (and answers!)", u'entity_id': 7673, u'annotation_id': 8603, u'tag_id': 2123, u'entity_type': u'comment'}, {u'quote': u"This is an interview with Mobile Medic, an organisation working on delivering care in the developing world through mobile phones.\xa0\nMobile Medic were approached through the OpenCare Twitter mapping process.\nCan you tell us a bit about the background of Medic Mobile?\nMedic Mobile builds mobile and web tools for health workers, helping them provide better care that reaches everyone. Operating as a nonprofit technology company, we develop free and open-source tools that can be adapted for specific uses, backed by evidence. Health workers currently use Medic Mobile to register every pregnancy, immunize infants against illnesses, track disease outbreaks faster, keep stock of essential medicines, and communicate about emergencies. Our platform is built for the last mile of healthcare, supporting over 12,000 community health workers in 23 countries.\nWe currently have 52 staff and three hubs: San Francisco, USA; Kathmandu, Nepal; Nairobi, Kenya. Not all of our staff works out of these hubs - about \u2153 of the team is remote. We spend a lot of time on Slack!\nOur approach has its roots in service and human-centered design. A lot of people are using these ideas now. Seven years ago, when we started, they were not so well known. We have a whole team of designers, including regional designers who use a participatory, ethnographic, HCD approach. They do in-depth site visits and investigate the context in which the apps will be used, and use a variety of techniques to do so: system mapping, role playing, in-depth interviewing. Some questions they might ask: \u201cWhat is the current workflow? Ideal workflow?\u201d, \u201cWhat is the day-to-day like for end users?\u201d It\u2019s an intensive and essential process.\nWe\u2019re inspired by a whole host of organizations in this space, including IDEO, Acumen, etc. 100% of our staff do a HCD crash course. Specifically for our designers, we have our own design curriculum, and many of them come from an HCD or anthropology background.\nWhat are the services that Medic Mobile provides?\nMedic believes that health is a human right. We know that global health disparities around the world are vast, and it\u2019s estimated that one billion people will never see a doctor in their lifetime. In many places around the world - especially low and middle income countries - community health workers (CHWs) are closing that gap. CHWs are community members - sometimes volunteers, but ideally paid - who provide basic AND complex health care for their neighbors. Our vision is to equip these CHWs with mobile technology and the right tools to increase their impact.\nFor example, a community health worker can support in the following ways:\n\n\nIdentifying and supporting pregnant women;\n \n\nHelping ensure the pregnant woman gets four antenatal care checkups, and identify any danger signs. (Having frequent checkups increases the chance the mother will give birth in a facility and survive child birth.)\n \n\nEnsure that children are vaccinated fully;\n \n\nScreen children and adults for common diseases (diarrhea, malaria), malnutrition, mental health, etc.\n \n\nIn many of these scenarios, community health workers serve as first responders, so that patients can start getting treatment quickly.\nMedic Mobile\u2019s tools are oriented around specific evidence-based use cases that have a clear impact logic. For example, we know that if we support a pregnant woman receiving a full course of antenatal care, she is more likely to deliver in a facility and survive child birth. Our use cases currently are:\n\n\nAntenatal care\n \n\nChildhood immunizations\n \n\nUnder 5 child health\n \n\nStock monitoring\n \n\nDisease surveillance\n \n\nWhat the means is that in above areas, we have a ton of evidence and experience that our tools work. For a new use case - say, an area of health services or protocol that we\u2019re not as familiar with - we have to do a lot of design. The design and product development teams are very tightly integrated.\nAs far as tools, we have tools for basic phones and smartphones (Android exclusively). We work with implementing partners and/or governments to equip health workers with these tools.\nI was interested that you mentioned delivering advanced/complex care this way?\nBroadly, when you\u2019re dealing with delivering care for complex health conditions in resource-poor settings, there\u2019s two issues:\n1) Practically, you need what Paul Farmer calls \u201cstaff, stuff, space, systems.\u201d You need expert knowledge. For example, to treat cancer, you need a professionalized cadre, you need certain goods like chemotherapy drugs, etc. All of that won\u2019t be delivered solely through community health workers.\n2) Where community health workers can come in for complex health conditions is in coordinating access, screening, and adherence to treatment. For example, with HIV. Thirty years ago, the World Health Organization suggested that delivering HIV care to the ultra poor was \u201ctoo difficult, that there wasn\u2019t enough money, it was too difficult to get people to adhere to medications out in the community.\u201d Partners In Health (whose work is very influential for us) showed that community health workers can support people in adhering to HIV medication.\nSame for TB. They proved that if you make the drugs available, you can even support the treatment of Multi-Drug Resistant TB through CHWs\u2013 where you have to take drugs daily for almost two years (and they have terrible side effects). Again, this is through trained community health workers in a process they call \u201caccompaniment,\u201d where CHWs are following up every day, providing support and guidance and ensuring that people are taking meds. In India, there\u2019s been a lot of success with the Home Based Newborn Care protocol which provides guidance to community health workers around the first 45 days of life and navigating the major risks to a child\u2019s life during that period.\nCommunity health workers are starting to be used in the US, too \u2013 in Harlem, First Nation communities, and the rural South. So CHWs can definitely support health issues that are complex and difficult, and in fact, can probably do so more effectively and with more touch points than a physician could.\nDo health workers have to be literate to use Medic tools?\nIdeally, yes, but we\u2019ve worked with many CHWs\xa0that have mixed or low literacy. For example, the Female Community Health Volunteer (FCHV) network in Nepal has mixed literacy. We\u2019ve equipped them with basic phones where the FCHV can text something very basic like \u201cP 12 Jill\u201d to mean \u201cJill is pregnant, her last menstrual period (LMP) was 12 weeks ago.\u201d Then, Medic Mobile will send the health worker SMS messages, reminding her to remind Jill about her antenatal care checkups. Someone with a low level of literacy can still use these messages, and we provide booklets/guides to make sure they can remember how. We also have a thorough training process, where we start with teaching these health workers (if needed) how to turn on their phones, how to enter characters, everything from soup to nuts. In Nepal specifically, many FCHVs have reported feeling more empowered and motivated after being trained to use these mobile tools for their work.\nHow are your tools evolving?\nThat\u2019s a very timely question. We are combining what we\u2019ve learned over the last 6-7 years and developing apps that support key shifts that we\u2019re seeing in global health care delivery.\nWe are moving beyond data collection to decision support. Previously, our tool was often a substitute for form filling (ie. registering a pregnancy), but more and more, we are helping community health workers make decisions \u2013 around complex protocols for under 5 child health, for example. We\u2019re moving towards supporting integrated performance management of CHWs, managing CHW targets and providing support for supervisory meetings between community health workers and their managers. Also, integrated health systems require integrated technology tools that will support families over time and across a variety of health issues. If we simply organize health information by specific conditions or by form, we could miss opportunities to provide longitudinal support, leave out important social and historical context, and create unintuitive workflows.\nIn general, we know that reactive systems that rely on sick patients showing up at facilities don't achieve equitable health outcomes. Health systems should be proactive and timely by design: mobile tools have an important role to play in bringing health workers to families' doorsteps often and early.\nHow do you coordinate with local government and politicians?\nWe are usually working with long term community-based partners. Ideally, organizations who already work\xa0with the local government. At some point, we want the local government to take over our mobile tools; the goal is always for the ministry to take over. We also sit on advisory committees and advise national eHealth and mHealth strategy in many of the countries where we work. We are committed to sustainable use of our tools. For that, we have to work hand in hand with local and national governments.\nIs it open source? Can I deploy my own?\nAll our software is open source. You can certainly deploy our tools yourself, especially our DIY toolkit. All of our code is available online at Github.", u'entity_id': 564, u'annotation_id': 8649, u'tag_id': 1144, u'entity_type': u'post'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.", u'entity_id': 863, u'annotation_id': 12921, u'tag_id': 1146, u'entity_type': u'post'}, {u'quote': u'Hi @Rachel , nice to read your ideas!\nI think a micronucleus workshop would be cool :-). Off the top of my head in ReaGent we have a binocular lab microscope, some Foldscopes and\xa0some variations of this model (both with bought lenses and self-made ones). Plenty of glassware & staining products as well. What would you need exactly for the\xa0workshop?\nWe can also do a microbial analysis combined with the fly fishing demo by @albertorey . We also have the equipment and might as well when we are at a river!\nAnother proposal\xa0by @Nabeel_p was also related to public engagement and communicating science through art. How could be combine these insights?', u'entity_id': 16325, u'annotation_id': 8652, u'tag_id': 1146, u'entity_type': u'comment'}, {u'quote': u'Microfluidics: building, next steps, gathering materials', u'entity_id': 6373, u'annotation_id': 8658, u'tag_id': 1147, u'entity_type': u'post'}, {u'quote': u'Microfluidics', u'entity_id': 7979, u'annotation_id': 8657, u'tag_id': 1147, u'entity_type': u'comment'}, {u'quote': u'@Michielstock has met with Noel Carrascal to help out with molecular modelling\nAfter the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing\xa0a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with\xa0a broader goal in mind.\xa0At some point\xa0it may help the insulin research\xa0(or vice versa), but it is not the goal.\nThe biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.', u'entity_id': 31639, u'annotation_id': 8656, u'tag_id': 1147, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 31041, u'annotation_id': 8655, u'tag_id': 1147, u'entity_type': u'comment'}, {u'quote': u'Apart from getting the device together, we can start thinking about what to do at the biohackathon in July. Federico shared some interesting techniques like Loop Mediated Isothermal Amplification\xa0(LAMP) and Recombinase Polymerase Amplification (RPA) that are convenient to use in microfluidics, as they are isothermal reactions. We already discussed culturing bacteria on the chip.\xa0We could\xa0add a detection step or\xa0try to do a transformation, or do\xa0cloning.', u'entity_id': 30405, u'annotation_id': 8654, u'tag_id': 1147, u'entity_type': u'comment'}, {u'quote': u'Testing many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here\xa0(cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequence', u'entity_id': 6291, u'annotation_id': 8653, u'tag_id': 1147, u'entity_type': u'post'}, {u'quote': u'Microfluidics', u'entity_id': 7979, u'annotation_id': 8660, u'tag_id': 1148, u'entity_type': u'comment'}, {u'quote': u'Microfluidics: building, next steps, gathering materials', u'entity_id': 6373, u'annotation_id': 8659, u'tag_id': 1148, u'entity_type': u'post'}, {u'quote': u'microwelfare. we sill live in a "normal way"...but we share time, infromation, products, \xa0skills, decision maing on shared purchases...anycase it is a light version of what you think.', u'entity_id': 24390, u'annotation_id': 8651, u'tag_id': 1145, u'entity_type': u'comment'}, {u'quote': u'In regards \u201cmicro-welfare\u201d and mutual support, have you communized your money or is there a separate fund that members pay into for these kinds of things? This is something we\u2019ve been discussing for our group and haven\u2019t figured out quite how to do it with the constraints of an economy like NYC. Have these things created a situation where people are able to work less or not at all?', u'entity_id': 21004, u'annotation_id': 8650, u'tag_id': 1145, u'entity_type': u'comment'}, {u'quote': u"I've already suggested this as a possible build project to help support people living in refugee shelters in Europe. I hope that we could find a way to implement it during the summer months.", u'entity_id': 33760, u'annotation_id': 8661, u'tag_id': 1149, u'entity_type': u'comment'}, {u'quote': u'After the first submission, our original project "doc.doc" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually\xa0turned out the early project in ResQ!\n\nIn particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as\xa0emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.\n\n\xa0Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it!\n\n\n\n\n\tOur project in a tweet\n\n\n\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.\n\n\n\n\n\tProblem that our project\xa0is willing to solve\n\n\n\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.\n\nThe current way of working shows the following problems:\n\n\n\n\n\tThe language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.\n\n\n\tThe missing digitalization of the gathered health data and the consequent discontinuity of the healing process.\n\n\n\tThe limited precision of the anamnestic research due to the high number of patients and the short time available.\n\n\n\n\n\tFinal User, individuals and\xa0community target\n\n\n\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.\n\n\xa0https://www.youtube.com/embed/MZSMi316E-Y\n\n\n\n\n\tSolution, brief description of the project\n\n\n\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.\n\n\nResQ-board.jpg2045x2500 640 KB\n\n\n\n\n\n\tTechnologies we will adopt\n\n\n\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.', u'entity_id': 866, u'annotation_id': 12932, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'1) Question 1\xa0(Emad): How to\xa0enroll\xa0in any position within the academic world (or other) to be able to stay in a safe society like\xa0ours\xa0until\xa0they (him and his family) can return back home.\xa0Being\xa0Iraqi and at the end of a PHD in medical science and student visa in England. He is also looking to support his family\xa0financially.\n\n2) Question 2 (Amal): How to find any position within\xa0the academic world, for somebody, on the way to Belgium, on a "family reunion visa", to be able to spend, the years waiting for the war to end, sensibly, by investing in her knowledge and-or career. As she will be supported by the Belgian state financially, money is a little\xa0less of an issue for her.\n\nAs they are not in a position of demanding things they would\xa0of course greatly\xa0accept any solution or\xa0proposition\xa0\n\nI guess what I am looking for most is;\xa0\n\n\xa0* What kind\xa0of\xa0opportunities\xa0exist\xa0being\xa0in their specific situation?\n\nWhere do these two individuals have to start\xa0their\xa0search for having the best chance\xa0of\xa0finding any job or position\xa0within\xa0the academic world?\n\nI hope this makes things more clear. If not, shoot\n\nI have asked both to give me more specifics on\xa0their careers.\n\nCan\'t wait for your return.\n\nMaria', u'entity_id': 16990, u'annotation_id': 12931, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Hi @mariekebelle\n\nI may need a bit more information before even trying to share any suggestion...\n\nFirst thing, I would like to ask you to confirm my understanding.\xa0There are two separate issues that would need to be faced:\n\n1) how to enroll in a doctorate while being classified a refugee [this one should be reasonable]\n\n2) how to enroll in a doctorate as an already senior professional\n\nThe latter\xa0is a bit complicated. In my limited experience, most EU doctoral programs are biased towards young, highly competitive candidates. Usually, more senior individuals access doctoral tracks by tertiary funding (e.g. the company hiring them covers the full university costs, and maintains them on payrol).\n\nCan you share with us how the idea of a PhD was selected, among other alternatives? Is it for the student status/visa? Or for the need to receive economic support? If their titles/certificates are at hand (which I presume, since they do not want to enrol in a bachelor, but in a doctorate), why not seeking a professional position (lecturer, lab technician, ...)? If they have tried and failed, could you share a bit more about this, to figure out what is the situation...\n\nIn general, no one size fits all in academic careers... It\'s my humble opinion, but for the double issue you are bringing to our attention,\xa0I\xa0am somewhat skeptical that anyone will be able to say "get in touch with X" or "look up on Y"... each solution will be custom tailored on the history and professional profile of the person. I hope to be able to help you doing the latter.', u'entity_id': 14667, u'annotation_id': 12930, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Hello peeps,\n\nThis is my first post in this community\u2026.\n\nSo no completely sure yet how it works or what kind of responses I will get.\n\nHere my story and my question:\n\nBecause I took into my household 1,5 years ago, a 17 year old Iraqi boy (refugee) I am becoming, a little bit against my own will" src="https://www.facebook.com/images/emoji.php/v8/zfb/1/16/263a.png">, a go to, ask to, for other Iraqis, around the globe\u2026\n\nHis mother, on her way to Belgium, Brussels, on a \u201cfamily reunion visa\u201d, was professor in History at the Mosul university. His uncle, doing a PHD in medical micro biology \u2013 molecular micro biology - immunity in England, Leicester.\n\nThey are both asking me for help in finding\xa0a job at universities or doing a (another) PHD in Europe.\n\nHis uncle, so he does not have to return to Iraq after his PHD finnishes in Leicester. His mother, to feel use full while waiting to go back to her country one day.\n\nSo her my question: Where, how and what can they do to have the best results in their search for a university job or sudy? As I never did a PHD or worked at universities it is still a blank canvas for me.\n\nThanks for taking the time for providing me with tips and tricks.\n\nMaria', u'entity_id': 831, u'annotation_id': 12929, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"We are a community of freelance developers and other digital professionals who work together online often purely over the internet. We started our project RefugeesWork to help newcomers to connect with locals who are looking for freelancers to outsource some work to them.\n\nIt all started in August 2015 when lots of newcomers, mainly from Syria, arrived to Germany.\n\nIt now turns out that it\u2019s not very easy for them to find any kind of employment at all. German companies seem to not need the skills they bring to the table and even if they do have what they are looking for, they often reject people who do not speak German well.\n\nWe decided to use our digital skills, first of all programming, to help them. We developed a marketplace app where on one side newcomers can register and describe their skills and on the other side local organizations can post their requests for freelancers. We believe work is the best pathway to connect refugees and locals and to date, we have over 300 registrations on the site and big community in Berlin and online. Those Syrians come from all walks of life and some have excellent background, or were running their own business.\n\nBut we also realized that freelance requests are mostly for freelancers with web and mobile development background. These are the jobs freelancers can do online, they don't need to speak the local language and because all the organizations are trying to automate their processes, there is actually a big need for these professions. We checked our database and available statistics and figured out that most of newcomers are young, they just finished their high school or had to leave in the middle of their studies so they actually lack necessary skills to integrate into the highly specialized German job market. Freelancing would give refugees freedom from discrimination they would face otherwise and freelancers are usually paid way better. The tricky part is in making sure there is a regular flow of work. That is our experience.\n\n\nRefugeeswork.jpg960x638 84.1 KB\n\n\nTherefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don\u2019t even know what to do with all the money.\n\nCurrently we are also following the work of Sensorica in Canada and Enspiral in New Zealand. Our wish is to create a micro-holding co-ownership model. One part of the motivation is to shield these professionals from all kinds of discrimination that they might otherwise experience.\n\nIt shields them, for example from the usual politicking among corporate employees who might tend to put such newcomers into a fairly low place. And another part of the motivation is exploring processes and legal ways for cooperation and decision making between many micro-holdings.\n\nWe try to list all our initiatives inside of Github organization SquatUp.\n\nWe try to keep all our work open and transparent for which we for now use Github.com, Gitter.im and Waffle.io which allow us versioned storing our documents, including code, working on issues on a kanban board and use open communication on a public chat.\n\nAll our projects are made with zero budget so with pure love and dedication for our mission: open source & transparency, inclusiveness, digital literacy and open organization. It is not easy, but we don't want to waste our time chasing funding and investors or clients, but instead co-create the world we want to live in. And we believe right people and opportunities will come from that and from the people that share the mindset and want to join us.\n\nIt\u2019s hard to make a living with all of this, so we just try to live as cheap as possible and we work for a better future where society is organized differently utilizing radical transparency and open source. Until then we live from savings that we sometimes manage to build when working on paid projects. By empowering refugees with skills we hope they will later become our partners and continue to help us build an alternative work. On top of that, we might manage to get in projects on a more regular basis and outsource paid work to each other.\n\nSo if you are a programmer, \u201dapptivist\u201d, please consider reaching out and connect your apps to our ecosystem via API or help us build an open ecosystem of related apps.\n\nIf you know anyone who did not yet start to learn programming, please tell them to join us in http://gitter.im/codingamigos/learners so they can get started for free immediately. We offer 24/7 support for free to get learners from zero to be able to create their first mobile app within a couple of weeks up to a few months given learners are disciplined and learn full time.\n\nAnd last but not least, if you can bring in paid IT projects to support our voluntary efforts, the community of learners and our effort to prototype alternative ways of organizing and working together, we would appreciate it a lot. Everyone who successfully brings in a project and helps us communicating with the customer during the project will be transparently included in the sharing of the revenue.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.\n\nLinks:\n\nRefugeesWork - www.refugeeswork.com\n\nOnline JavaScript school - www.wizardamigos.com\n\nCoding Amigos meetup - www.meetup.com/codingamigos\n\nCoding Amigos collective - www.codingamigos.com\n\nSquatUp - https://github.com/SquatUp/projects/blob/master/README.md\n\nNina Breznik - @ninabreznik\n\nAlexander Praetorius - @serapath", u'entity_id': 769, u'annotation_id': 12928, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 663, u'annotation_id': 12927, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 9577, u'annotation_id': 12926, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'From September i\xb4ll be working at the ROC21 Project (http://roc21.openstate.cc). As I\xa0already gained\xa0a little bit experience at the SAVA project, they asked me to be part of the Team. I\xb4m looking forward to that, because now we can think in bigger scales. We will try to build up a community inside the camp, where everyone is an active part. Thinks like an Urban Garden on top of the building or\xa0an actual woodworkshop are under discussion. But there are a lot of issues to face, for example how to motivate people @Natalia_Skoczylas it could go in that direction. Would be great to find some kind of reward for peoples work, even if it\xb4s not money. I\xb4ll keep you guys updated!', u'entity_id': 27799, u'annotation_id': 12925, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'It is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy_P. , while wondering how to support refugees,\xa0both have found that cooking is fundamental to care (one, two)', u'entity_id': 16858, u'annotation_id': 12924, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"How Europe is punishing migrants\n\nAs hundreds of thousands of refugees have poured into Europe, some countries and regions have tried to pass legislation that specifically targets refugees and migrants. Here's a look at some of those policies that have been introduced in the last...", u'entity_id': 5545, u'annotation_id': 12922, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'the migrant crisis as a training ground for the crisis of the future -\xa0this reads\xa0so compelling, thank you Michael\xa0for coining it!', u'entity_id': 17141, u'annotation_id': 8764, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Clearly you\'ll have amassed vital\xa0practical experience on your travels and it would be good to link up the learning with others in Edgeryders. I really like the notion of \'Emergency Mutual Aid\' and a very concrete practice of solidarity. I can see how it\'s useful to see "the migrant crisis as a training ground for the crisis of the future".', u'entity_id': 14386, u'annotation_id': 8763, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'I have been doing research through actions. Seeing the migrant crisis as a training ground for the crisis of the future. Working with a mobile footcare clinic and trying to extract the best practice as we moved through the small camps of italy and down to serbia. dealing with medical issues and truck logics', u'entity_id': 6470, u'annotation_id': 8762, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe.\nFor OpenVillage session(s) \u201cfor me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels\u201d", u'entity_id': 6360, u'annotation_id': 8761, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'In the past year we met many people who do relief, aid, skilling up\xa0work with regugees.. most of the projects are local scale\xa0- the Orange House in Athens (15 residents and 50 people around to receive some services), a Refugee 2 Refugee Solidarity Call Center\xa0in Thessaloniki, informal and bottom up,\xa0and crowdfundedfunded through\xa0an international campaign.. or ad hoc backpacks packing\xa0to welcome people in Kos Island, Lesbos..\xa0and beyond.', u'entity_id': 7915, u'annotation_id': 8760, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'hello Edgeryders,\nI am part of the golden foot collective. we took a mobile independent footcare clinic\xa0and cinema\xa0from scotland to italy and serbia. \xa0To help in the migrant crisis. there were\xa08 of us and we had 2 nurses and 2 mechanics. everyone had done\xa0some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.\xa0 it all worked well. \xa0since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments?\nreduce there expectations of situations to allow them to see what is happening? how do we get people to learn rapidly as this is the only way to stay on top of quickly changing situations? how can more of the knowledge and expertise that has been aquired be passed on more effectively? \xa0in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?\ncoming from scotland we live in an end destination. how \xa0can we have effective solidarity with those that live on transit routes as well as those in transit?\nI am producing zines and perhaps in the future i will do a podcast but i come here with alot of questions.', u'entity_id': 860, u'annotation_id': 8759, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.', u'entity_id': 33817, u'annotation_id': 8758, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'I think it would be great to involve your friend from day one!\ns/he would probably have a lot of precious insights that would be highly needed to implement the best user experience for such a scenario.\ndid you maybe elaborated the\xa0concept a little further?\nI would suggest to have a look at these\n\nhttp://urban-refugees.org/for-immediate-release-urban-refugees-to-develop-a-mobile-messaging-system-to-help-refugee-community-overcome-communication-challenges/\nhttps://www.gsma.com/refugee-connectivity/apps-for-refugees/', u'entity_id': 33800, u'annotation_id': 8757, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'It is a beautiful way of reaching out to the world and letting people know how , living in a confined environment(camps) can be challenging.If we are \xa0our brothers and sisters keepers, then we will make out time from our very busy schedule to donate and help millions in those camps. He cared enough to share this story, so please y\'all, return the favor by giving whch will go a long way of changing a life. " sharing is caring", Giving is transforming and investing in other peoples lives.The best investment, is in the life of another human being. Thanks for sharing', u'entity_id': 27821, u'annotation_id': 8756, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?\xa0 Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).\xa0\nOur schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it\u2019s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical.\nThe language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don\u2019t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.\xa0\nMontessori\u2019s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group.\nDuring these years we\u2019ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:\xa0\n\nThe discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize \u201cThe ground language\u201d (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.\xa0\nThe comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named \u201cRoots and Branches\u201d (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.\xa0\nDue to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group.\nThe importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.\xa0\n\nFrom 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.\xa0\nOur goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.\nThe \u201cCascina\u201d will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.', u'entity_id': 828, u'annotation_id': 8755, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'question\xa0instead of the municipality.\nWhen talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?)\nBut did it become easier to\xa0learn\xa0a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?', u'entity_id': 10365, u'annotation_id': 8754, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'ello all, my name is Franca, I come from Italy.\nAbout me.. philosopher, interested in post-structuralism, new ways to do international cooperation, passionate about Geopolitics and China-Africa relations. I\u2019ve worked a lot with refugees, doing legal orientation, helping them to find houses, jobs, but also writing projects to get funds to create new spaces of inclusion.\nFor me it\u2019s interesting to see how many edgeryders are interested in migration or refugee issues and what are the connections to spring up from the many well known problems of working with refugees. I think that it\u2019s possible to underline some key issues when talking about care in this context .\n\nHelping Relationships vs Peer Relationships\nKnow your rights vs Rights as a cage\nIntercultural problems and Empathy\nInclusiveness in our society/community: avoid ideological and too theoretical approach\n\nA little bit about my experience: In particular I would like to speak about my working period during the so called \u201cNorth \xa0Africa Emergency\u201d for 3 years. It was a really hard situation for our (Italian) reception system. We were in the paradoxical situation to tell them: \u201cyou are an asylum seeker, you HAVE to be an asylum seeker, if you want to have any chances to stay in Europe\u201d.\nIn effect after the Arab Spring Revolution (2011) everything changed. A lot of people that came from Horn of Africa or from other Sub Saharian regions and were in Libya for work decided to come in Europe. Gaddafi\u2019s death meant the end of every agreement \u201cPetrol vs Migrants\u201d that Italian Government had signed with Berlusconi in 2009 (for more details, this Guardian article). So you\u2019d have more asylum seekers in Europe, but also different routes, different countries of origin, different reasons to leave their countries.\nIn 2011 asylum seekers in Italy were more than 40.000 (4 times more than 2010, Eurostat) and Italy became the fourth country for the number of claims submitted, mainly from Nigeria,Tunisia, Ghana and Mali. Most of them have lived for many years in Libya, illiterate in their own native language, living in segregated conditions of work or in the terrible detention centers.\nThe history is long and I\u2019 don\u2019t want to become boring, but only to say that it\u2019s not possible to speak about refugees in general when trying to be of real help. We have to think about the countries where we are and where they come from (for example 90% of Syrian refugees that arrived in Italy decided not to ask asylum here, but in other north EU countries), the migration routes, the particular war conditions, but also the economical ones..\nFor all these reasons it was hard to prepare asylum seekers during North Africa Emergency because they came here for Lybian crisis and most didn\u2019t leave their countries for reasons of \u201crace, religion, nationality, membership of a particular social group, or political opinion\u201d (Geneva Convention) or for war crisis in their countries (subsidiary protection). And so it was difficult to explain them that formally they have to be asylum seekers, that we need to find these elements in their stories. How could we help them? I usually do some group or individual meetings to inform them about procedures, about what does it mean to ask asylum and I prepare them for the Audition. How to help them to underline important elements in their stories, not lying... A lot of also ethical questions..(Legislation vs Reality)\nA relation of care: teaching a foreign language\nThe relations between us is a relation of help. Sometimes you can help someone too much.\nThe question is more to create opportunities for people to be really active (refugees as #nospectators). There are language barriers, cultural misunderstandings, different contexts of life, different expectations.\nIn this complex and nonlinear context of work that I would like to start from the first point: the challenge to learn a new language, the language of the recipient country. It could be difficult and, in some situations, also impossible, like a WALL.\nThis could be because learning a language means that you accept to be in a country, you decide to start again your life. For a lot of vulnerable people that are victims of violence (in their countries of origin or during the migration travel) it could become a catalyst of bed experiences.\nSo learning a language becomes the first step to say: \u201cI\u2019m here. I would like to take part in this new society and new community.\u201d\nFor all these reasons we needed to share knowledge and experiences about \u201chow to teach in more effective way?\u201d, we needed to create a community - or better to create a space for a community of italian schools! So we started with: www.milano.Italianostranieri.org\nIt is a platform of the Municipality of Milan to help foreigners find a school of Italian; there are a lot of problems to find the right schools, also because there are a lot of schools but not connected.\nWe saw that there is this tendency to work alone, providing a service but without \xa0sharing knowledge, critical points.. We knew people that attend 3 different classes, for months, \xa0but they couldn\u2019t speak Italian!\nSo we decided to open our website to every school, private, public, run by volunteers, by NGOs.\nIt\u2019s not simple to help, to take care of someone. It\u2019s a relation full of responsibilities, and good intentions often aren\u2019t enough. We noticed also some schools that are so active in helping their students, helping them in legal stuff or finding jobs.. But all these activities could be dangerous, create a bubble, a dependence relation, mixed with ideological thoughts ..\nYour students are not yours.\nTo create a community we realized \xa0real life meetings between teachers and schoolmakers. Every school has the possibility to post directly activities, news. So everyone can have an always updated map of time classes, levels, locations etc; But also a moment of exchange between teachers, methods and materials. The teachers all together wrote also an handbook for teachers (in Italian only). We also created an e-learning database to help people to find free resources on internet and a lot of videos (in 5 languages) to explain Laws. Education system...\n\xa0\nI\u2019ve been asked what projects I think can really make a difference: Projects that work on the concept of resilience,\xa0avoid that people identify themselves with their own pain.\nWe saw a lot of people that 5 or 6 months after their arrival start to fade, to turn off. During the first months you hope that your rights became effective, job, home.. But nothing happens. Your life becomes full of complaints.\nA very interesting school that is part of the community is for example, Asnada. It\u2019s a Montessori/Experimental\xa0school. The idea is to teach in a different way. Helping people to use this new language not as a \u201cstranger\u201d language. Usually you start to have 2 languages: the native one that is the language of feelings and relationships and a second language that is the language of bureaucracy. The idea is to teach a language that helps you to construct your new identity, \u201ccreate your new life here in a new language\u201d.\nSo the lessons became a workshop where we, all together, construct the language, with different ways, methods (arts, music, plays..) and also being a community.\nSo in my opinion it\u2019s really important to be able to find new ways to take care, creating effective spaces of meeting, of real exchange.\nWork on resilience, opening workshops where people can create something (for ex. FabLabs, Makerspaces..) using open technologies (like Raspberry Pi) could become new ways to take care of people in really big troubles, with strong vulnerabilities and help them to start again.\nMaybe Opencare, Edgeryders community could be the right place where to start!!\nWhat do you think?', u'entity_id': 515, u'annotation_id': 8753, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'This sounds like a brilliant project.\nI really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market.\nMore power to you. I will certainly follow your project very carefully.\n\xa0\nI wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http://empowerhack.io/)', u'entity_id': 9617, u'annotation_id': 8752, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11090, u'annotation_id': 8751, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Just stumbled upon this\xa0social enterprise creating community and business\xa0opportunities for migrant women chefs - especially through popup kitchens.\nMazi Mas means "with us" in Greek. "In the kitchen we speak the same language" they say.. A beautiful presentation video is here:\xa0http://www.mazimas.co.uk/our-story/', u'entity_id': 12481, u'annotation_id': 8750, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"Thanks for sharing this with us @Luisa.\xa0\nI was convinced of this approach ever since I heard Jeff, a community member in Athens telling us about Senait's Kitchen to actually provide employment for migrants - a little like a company shell. In\xa0a year they've gone through several iterations, bringing new migrants in the group of cooks, have catered to hundreds and are on their way of building a cooperative. Check out\xa0Options Foodlab:\xa0http://options.limited/about-options/", u'entity_id': 9429, u'annotation_id': 8749, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 695, u'annotation_id': 8748, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Refugee Food Journeys\nAs we all know Greece has been struck the hardest from the influx of refugees in recent years and we felt we needed to include them in our quest for food sovereignty. This part of our research focuses on matters of food consumption and food waste in refugee camps. This is our\xa0 first video on this issue:', u'entity_id': 560, u'annotation_id': 8747, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 19759, u'annotation_id': 8746, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 8745, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"I've already suggested this as a possible build project to help support people living in refugee shelters in Europe. I hope that we could find a way to implement it during the summer months.", u'entity_id': 33760, u'annotation_id': 8744, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 8743, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"Thank you all for your responses! I'm afraid, I haven't yet caught up with the whole routine, so sorry for my impoliteness of answering late..\nWe (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out.\nHow is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men.\n\nRight now, we're in contact with a group of Syrians, around 25-32 of age, who have given us insights on daily life in the camp but also daily life in Syria and we have spoken about the small moments that create the feeling of home.\n\nSince they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).\n\nSeeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools?\nBoredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better.\nAt this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.", u'entity_id': 26014, u'annotation_id': 8742, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"Hi Dennis,\nWe see this same problem with many of the short term\xa0volunteers in Calais.\nA lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to\xa0help\xa0of their agency;\xa0their freedom to act normally.\nWhen i first started working on the camp\xa0i fell into the same trap. I was helping to build shelters, but i was also a little scared for myself:\xa0my safety, my equipment, 'getting the job done correctly'. It was only by standing back from the action and just talking to some of the camp residents\xa0who were trying to help us that i found out more about them. Many of them had been engineers or builders before they embarked on their journey to a safer life.\nI realised that these people were more qualified than i was, had more reason to make sure the shelter was built well and could be trusted with our equipment because it was of great value to them that we had brought it to the camp.\nI had to turn off the switch in my head that was about 'me' and truely be there for them. But it could only be done by firstly opening a dialogue, then through mutual understanding and cooperation.\nAs the day went on the residents who were working with us drifted away (to do tasks like cooking, eating, prayer, preparation for the nighttime, talking to family at home/friends in other countries) and we found ourselves continuing the work as our orginal team. That was the moment that we really started to help them. We could treat this task as a job, we could committ 100% of\xa0our time and resources to finishing the job quickly, because that's why we had come out\xa0there. As a result 16 people had a drier, warmer place to sleep that night.\nBut we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people.\nPeople first, mission second.", u'entity_id': 20040, u'annotation_id': 8741, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Despite being child to parents who had both been refugees themselves, that part of their past has never been openly talked about in our house.They told me once in full detail and never since. Once in a while, they would share bits and pieces of memories from all the way from Vietnam to Germany: How my grandmother took my mother to the docks in the middle of the night. The boats. The sea. How my father was captured by the Navy. The "re-education camp". The second try... the good people at the boarding home they were allowed to stay at. Fellow refugee children they made friends with. Attending school in a totally foreign language at day. Learning that very foreign language in the evenings. Working - and eventually not only being able to make their own living, but being able to make another person\'s living as well - in other words, not only having a child, but ensuring a safe and promising future for that child.\n\nThat being told, I must confess, I couldn\'t imagine how it must be to find oneself in such a situation. If I don\'t know their needs and wishes, how could I possibly dare saying that I\'m helping with whatever I think that would help them?\n\nIf a refugee wishes for work, it almost automatically seems like a matter of impossibility: "We cannot even provide our own people with jobs, how do you think you would fit into that picture?" Maybe, that was a misunderstanding. Maybe, what was meant was rather: "I\'m tired of sitting around all day. I want to feel useful again. I don\'t want to be helped only. I also want to be in a position of helping others!"\n\nI once helped supplying refugees with clothes. Our group of volunteers carried box after box and it would happen that some of the refugees ask to help us. We would refuse their offers and told them that it\'s okay to go rest and let us do the work.\nI didn\'t realise at that time that we treated them like children, belittling them, taking their integrity and giving them the feeling of uselessness. Out of arrogant goodwill.\n\nSo how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It\'s clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?', u'entity_id': 665, u'annotation_id': 8740, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'From what you presented and how funny it seems, I think people can easily take it as an adventure call and that\u2019s nice. But I think you should pay attention so that the purpose of your project is understood: the fact that it\u2019s referring to refugees groups. For example, is the app going to be in German? Or what other languages? Refugees might have difficulties learning German (and not only refugees, newcomers too)\u2026 How is the project evolving, by the way?', u'entity_id': 20130, u'annotation_id': 8739, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'After a very long research phase me and my team from Newcomer now have conceptualized a smartphone-app, which familiarizes not only refugees but any newcomers with their environment. Our team is working in the Hacking Utopia project at UDK (University of Arts) in Berlin. We are two product designers and two communication students.\nMain target group are refugees why we mostly talked to young men from syria. Of course they are facing a lot of problems and some are probably more serious tha the one we are trying to solve. We found out that -waiting for german bureaucracy to give them the needed papers and learning german- a lot of them feel lost in their new environment. Although our focus is on refugees Newcomer is for everyone, who is new in the city.\nOur App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Caf\xe9s and Eventspaces be a part of our project. So for example we lead a participant to a caf\xe9 and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience.\nSo our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment.\nMilan/Newcomer', u'entity_id': 699, u'annotation_id': 8738, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 683, u'annotation_id': 8737, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Hey everyone,\nthanks for your thoughts! The idea of an "interactive camp" whithout\xa0the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different "problems" from each other but to organize the camp differently from the very first:\n"We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs."\nand as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here:\xa0http://www.roc21.net)\nThe idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move\xa0to a better place as soon as possible.\xa0\nBut in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp\xa0where we were\xa0building stuff all together, was really nice because we were doing something with our hands and totally\xa0forgot the situation around us.', u'entity_id': 26018, u'annotation_id': 8736, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people.\nThe first time we visited I was surprised how \u201egood\u201c the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).\xa0\nThe ICC Messe is a former congress centrum which was recently rebuilt\xa0to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling.\xa0Inside of each room there are 4 bunk beds, so in total 8 people per room\xa0(familys are usually separated and live in private rooms, also: the rooms are separated by gender).\nUsually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.\xa0\nFirstly we asked how people organize themselves in the room.\nThe Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying \u201eK\xfchlschrank\u201c. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored\xa0there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official \u201emeals\u201c. They boil the eggs in a water cooker by the way!\xa0\nAnother interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living.\nAlso very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night.\nBerivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light.\nAnother very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night.\nAlso they put pictures from magazines on the wall to make the atmosphere a little more cosy.\nBut still even if they find the possibility to hack something there is a lot of stuff just flying around in the room.\nThere was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore.\xa0What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?", u'entity_id': 681, u'annotation_id': 8735, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about.\nI frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn)\nCreating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your proje", u'entity_id': 22200, u'annotation_id': 8734, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'I was reminded of this story when reading the headlines these days, how Germany\'s trend of receiving refugees was considerably reversed in 2016 and worse, people are now sent back to the borders of Europe (elsewhere called "voluntary deportations"?!).\nAlso, I re-assigned this story to the "Policies of Care" challenge. | @Franca', u'entity_id': 7469, u'annotation_id': 8733, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"We don't have contact with the refugees anymore, the camps ate far from the town and nobody listens to any ideas. So, the only thing I can do it's to keep it for my list. It's difficult to explain the situation here...", u'entity_id': 26963, u'annotation_id': 8732, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"I can't speak to places like Germany and Sweden, but the numbers of refugees in most EU countries are very low compared to the overall population - and the ones who managed to get there tend to be younger and more able, so not placing huge demands on health care per se.", u'entity_id': 30187, u'annotation_id': 8730, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'migration', u'entity_id': 39328, u'annotation_id': 11612, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'To those of us in the UK the Calais \u2018Jungle\u2019 has become synonymous with the migration and asylum crisis that has occurred in Europe over the past 2 years', u'entity_id': 39328, u'annotation_id': 11610, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'At last count it stood at around 4900 people, most of whom are trying to claim asylum in the UK.', u'entity_id': 39328, u'annotation_id': 11670, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'The migration issue dominates the European political debate. The influx of migrants, some people say, will break the European welfare system. Any new person coming in is reducing the amount of care that others can get. Care is supposedly a zero-sum game. Is this really the case?', u'entity_id': 5581, u'annotation_id': 8662, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'The Danish city of Randers made it mandatory for public institutions, including cafeterias in kindergartens and day-care centers, to have pork dishes on their menus.\xa0\nStates in southern Germany can seize assets from refugees if they are worth more than 750 euros.\nSlovakia said that it will refuse entry to Muslim refugees, instead announcing that it would take in only Christians.', u'entity_id': 5545, u'annotation_id': 8663, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Social and or health care of refugees in Europe', u'entity_id': 5479, u'annotation_id': 8664, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'We agree with what you propose, we have a couple of comments regarding two of the domains:\n\n\nsocial/health care to refugees\n \n\nWhy focus only on refugees and not on migrants in general? Or if we don\u2019t want to call them migrants and refugees, let\u2019s call them something like people in movement without papers: Sans-Papier', u'entity_id': 6774, u'annotation_id': 8665, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'People on the move makes a lot of sense. It includes people who move for any number of reasons. But we then need to give people some examples of what might fall under that, e.g. People fleeing war, People moving abroad to study, working mostly online and living in different parts of the world etc.', u'entity_id': 13542, u'annotation_id': 8666, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'omorrow the second meeting with the Milanese community will take place. Comune di Milano and WeMake, in collaboration with the association "Villa Pallavicini" have organized a presentation of OpenCare to engage\xa0a\xa0local migrant community.', u'entity_id': 5465, u'annotation_id': 8667, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Im many EU countries the welfare infrastructure was designed for populations with planned groth. With more refugees arriving you both have an increase in number of people to care for, and different kinds of needs which is being framed as the source of " chaos in the system". Perhaps it would make sense to look at how health- and social care is being managed both in the camps and temporary receoption centres, as well as in the mainstream healthcare providers.', u'entity_id': 5463, u'annotation_id': 8668, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Is there a distincting between the NHS overall (long term) and the temporary refugee situation:\xa0 Is it just a question of money, or are/were there some things that can be improved? How does a clinic in Brixton cope with a situation in which you have five hundred people who have just walked to Calais and have broken feet? In addition to the Epidemological situation.', u'entity_id': 5463, u'annotation_id': 8669, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Also mentioned: hackers making rucksacks for refugees.', u'entity_id': 10261, u'annotation_id': 8670, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'http://www.rferl.org/content/lesbos-migrants-turning-boats-into-backpacks-dutch-volunteers/27587663.html\nis a link to a story about a Dutch woman who made a super clever hack of the junk boat and lifejacket parts to make backpacks out of them using a few simple tools, which she then taught to the refugees. \xa0An excellent maker story solving a real problem without having to get too high tech or even ask for wither permission or forgiveness..', u'entity_id': 5462, u'annotation_id': 8671, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"http://www.bbc.co.uk/mediacentre/proginfo/2016/10/frontline-doctors\nIs a link to a writeup on an hourlong BBC documentary I watched while I was in Amsterdam last week. \xa0I didn't see a link to watch it online, though the synopsis is very good. \xa0It would be interesting to follow up with those doctors to see what they are doing about all this now.", u'entity_id': 5461, u'annotation_id': 8672, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.", u'entity_id': 10128, u'annotation_id': 8673, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8694, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8695, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8696, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8697, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"This sounds like a fantastic project. Congratualtions on your initiative and making it all work out so well.\xa0It's great to hear a positive story where people are learning to integrate and create a new life out of a difficult situation.\nThere are certainly lessons that could be learnt from your experiences. I hope that i can share some of them with the volunteer teams that work in Calais. A project like yours in Calais would be a real start to help allieviate the problems between the local residents and the refugees on the Camp.\nI'd love to learn more about your process and they way you initially reached out to the refugees. How did you get them to trust you and your service? Have you had any scary moments?", u'entity_id': 8654, u'annotation_id': 8698, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8699, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'The first part of the event consisted in a kind of intense briefing of the situation in countries closest to Syria. In a short time the populations of small countries in the region, Lebanon and Jordan, have grown manyfold (1.1 Million refugees in Lebanon, 630,000 in Jordan - in addition to Palestinian refugees already there). Some reading materials with up to date, detailed information:\nArmenia:\xa0Anna\u2019s report from Yerevan is a good introduction.\xa0\nJordan: Five Years On | Syria Crisis-related needs and vulnerabilities in Jordan. \xa0\nWhile many of the cities and towns receiving refugees face similar challenges there is a significant difference. Some are transit locations, which asylum seekers pass on their way on to other destinations. They include major cities in Greece, Italy and Turkey, as well as small coastal towns from which people leave on boats to take their perilous journey across the sea. There, volunteers do their best to care for their immediate physical needs and the mandated administrative/security procedures to grant them entry onto the mainland.\nOther cities and towns \xa0are receiving the newcomers on a more long term basis. This happens in two different phases, each one posing its own \xa0political, administrative and infrastructural challenges for the hosting communities. The first one is the period of time between arrival and the approval or rejection of the person\u2019s application for refugee status. This period could be very long, as in the case of the Palestinian refugees in Jordan, or that of Mr. Teferi in Norway. The second one is the period that begins once an individual has secured refugee status. In this period, the challenge is navigating the difficult period between receiving the papers and being fully established in the social and economic life of the host new community.\nWhile the details differ, the problems and needs mentioned by mayors, NGOs and activists fall into one or more of the following:\n\nResource efficiency: How to get better at covering necessities of both refugees and citizens/ residents on very limited resources? As an example Jordan is one of the most water scarce countries in the world and 70 per cent of the population suffers from inadequate water supply below the national standard of 100 liters/person/day. Aging infrastructures, inefficiencies in operation and maintenance. interrupted provision of water services etc. Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc? Affordable, modifiable technologies are required to manage the current crisis as well as to secure peace in the region.\nInteroperability, knowledge transfer and Institutional memory: I heard many calls to \u201cmake information available about how the system works\u201d, and "calls for online platforms to fix a perceived\xa0lack of information" thought to be a "key obstacle for labor market access". Here too I head that \u201cwe need a database of all the initiatives and resources available to help refugees\u201d and "we need to make existing information about getting your paperwork done, how to set up a new business etc".\xa0There are\xa0three underlying assumptions: 1) That some people understand in detail \u201chow the system works\u201d as a whole and 2) That they can transmit that kind knowledge into brochures or documents and that 3) This information material will make the system navigable and penetrable for newcomers. These three assumptions do not hold up to scrutiny and could fill an entire blogpost with reasons as to why. For now I will simply refer you to the Brickstarter report as it is a light, beginner-friendly introduction to some of the issues.\nScalability of public services: How to build/rethink provision of public services so that they can accommodate changes in the number of people to serve? Many of the participants complained about the lack of resources to provide education or training for newcomers. Others mentioned the provision of health and social care services, especially psychological support for the traumatised. I heard a lot of calling for more resources to be put into existing services, but little examination of how existing services are performing and even less awareness about more effective, flexible and cost-efficient approaches. Are we sure that throwing money onto more of the same will result in better outcomes? \xa0Sugata Mitra\u2019s work on Minimally Invasive Education, Miguel Chavez\u2019s experienced from\xa0building Makerspaces in Favelas, Freifunk and many others offer alternative approaches with promising results. The political will, and practical ability, to welcome and accommodate newcomers depends on it. In this recent talk, I present a proposal for how we can break out of the zero-sum thinking in the provision of care services as an antidote to rising social tensions between social groups.', u'entity_id': 5234, u'annotation_id': 8700, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Four years ago, as we were planning our move to Brussels, Nadia and I decided to look for flatmates. Most of our friends and family members were rather puzzled: not many couples decide to share their apartment, though they can afford not to. We, however, thought it completely logical. Nadia is Swedish and I am Italian: at the time we lived in Strasbourg, France. That made us a migrant nuclear family, completely cut off from the network of emotional and material support that our friends and families of origin could offer. We were simply too isolated in our Strasbourg apartment, nice though it was; and we decided to try something different. So, we rented a much bigger apartment than we needed and asked the Internet for someone to share it with.\nFour years on, we think the experiment worked. For the last three years we have been living with Kasia and Pierre, a young couple of expatriates (Kasia is Polish, Pierre French). We really enjoy the co-habitation: the home feels more animated, and not a day goes by that we don\'t chat at least a little bit, over coffee or breakfast. We enjoy the big, airy living room overlooking the city. And, frankly, we appreciate that our lifestyle is really good value for money: thanks to the economies of scale implicit in family life, we pay a reasonable rent for a really nice space.\nAlong the way, we discovered that what makes our living together so enjoyable is that we are so different from each other. We come from four different countries; we are of different ages (Pierre, the youngest, is 19 years younger than me, the oldest); we have very different jobs (Kasia is a dental nurse, Pierre is the manager of a fashion boutique, whereas Nadia and I both belong to the "what is it that you do, again?" tribe); Nadia and I travel a lot, whereas Kasia and Pierre tend to be in town most of the time.\nThis works well on many levels. On a purely practical level, when we travel we love the thought that the home is not empty, and in the event of some misfortune (think plumbing failure) they can intervene; and I am sure they enjoy the privacy and the extra space. We pay for electricity, phone and the Internet, they pay for the cleaning services \u2013 less paperwork to do. We have an extra room, which normally serves as Nadia\'s and my office; but it doubles up as a guest room for the guests of all of us.\nBut there is more to co-habitation than practicality. Kasia and Pierre are lovely people: and, crucially, they are different people from Nadia and myself. We live out the city in different ways. We have different takes on almost everything, from French politics to Belgian beer. Comparing notes with them is always interesting, and I really value their insights and wisdom. Not that we spend all that much time together. I think our co-habitation unfolded in the right sequence: we started by a default attitude of rigorous mutual respect of each other\'s privacy and spaces. Then, over time, we grew closer, started to share the occasional meal, the occasional outing; we met each other\'s friends and families, lovely people to the last one. Guess what: we have built a sort of familial-like arrangement in a foreign city, among people who were originally complete strangers to one another.\nIt\'s working well. So well that, when a year ago our landlord announced that he was reclaiming his apartment and we would have to move out in the summer, we decided to stay together, and to look for a new place as a four-people household. Eventually, we got more ambitious and thought, what the hell, we might as well grow the family. If four people can live so well together in a larger apartment, how would it work with five, or six, or seven in an even larger one?\nIt works well, it turns out. We moved to a lovely loft, and were joined by a third couple (Belgian-Italian). Giovanni and Ilaria have since moved on for family reasons, but we enjoyed their company while we lived together. Their place has been claimed by Thomas, a young French engineer.\xa0\nWe do this for totally egoistic reasons: we enjoy each other\'s company, we save money, we live in style. At the same time, we are aware that we are working our way through solving a global problem. Planet Earth has 230 million international migrants; intra-EU migrants like us are 8 million. Many of Europe\'s young people simply cannot afford to hold their ground: their work, education paths, and love lives lead them to migrate. When they do, they, like us, lose their supporting networks, and it is really hard to rebuild them. Living together, especially in diversity \u2013 the older with the younger, the sporty with the mobility-challenged, the academic with the blue-collar worker \u2013 becomes a platform for sharing our different abilities, and being able, as a household, to solve many different problems, both emotional and practical.\nNone of this is new. You have heard it all before \u2013 at social innovation conferences and workshops, for example, and typically by people who live in middle-class nuclear families. But we have decided to walk this particular talk; it will probably not be the right choice for everyone, but it is the right choice Nadia, Kasia, Pierre and myself; and I strongly believe it might be right for many others. I encourage you to at least consider it for yourself: as more of us make this choice, the real estate market will respond, giving us more spaces suited to our particular lifestyle (in Brussels, for example, is very difficult to find large apartments with 3 or more bathrooms!).\xa0So, who wants to join?', u'entity_id': 648, u'annotation_id': 8701, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"\u201c We started different no thinking about projects, but our own experiences being people on the move.\xa0\n\nBeing somewhere where you chose to go\nBeing somewhere you didn't\u2019 pick: job, being refugee, \xa0being moved by parents...how it affects your mindset\n\nWhat is the difference between these two in terms of care on the move?\nOne person was talking about being in china for job of her father to experience completely difft culture and not being free to decide to go there\u2026.vs choosing to move to a new city voluntarily in a city where many different cultures in Kreuzberg. Just getting to know different food and culture at a very young age and getting to know this in a playful way without much prejudice in your head\u201d", u'entity_id': 494, u'annotation_id': 8702, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'\u201cWe were all answering the question of why we chose the different topics and why we chose them. Mine was about being on the move and the point that is for me very importan is the idea of doing something fo the first time and you have to cope, no matter if you have to do a job or ...you are always doing for the first time. Found a sory in newspaper about caregivers and they tried to set up school for nurses where they given puppets they have to be with for weeks before working with humans. Switch perspective. I found a flyer which was something like a manual for shopping in supermarket in the fifties..they were handing flyers out about how to behave and shop in he supermarket and now people are complaining about refugees not knowing \xa0how to behave the first time...there is an arrogance... What is possible with products etc to switch perspective and lose embarrassment etc around doing something for the first time. People \u201cmisbehave\u201d because. The first time I met a Syrian guy was during the refugee crisis, it was first time experience for both of us, no just him.\u201d', u'entity_id': 494, u'annotation_id': 8703, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'\u201cWe were mostly talking about first time experience of meeting some guys from syria. How can we start meeting people on a high level and not relationship that we are giving, and they are receiving donations. That we are both receiving and giving care.\u201d', u'entity_id': 494, u'annotation_id': 8704, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"We had a discussion about \u201cstranger danger\u201d. Which I have recently been having with people from older generations. When it comes to refugee crisis , even people I know that normally would act very human and never put themselves above another suddenly are afraid when refugees come to the country. In part it is because of the lack of contact; they don\u2019t come naturally to a place where exchange could happen in an uncontrived way. How could this be set up, or how could it happen? We talked about how younger people can be a connector, how it needs a connector...there are many of us who want to engage but don't because the connection is needed and doesn\u2019t happen without being designed. When travelling connecting is very easy, but in your own town you rarely have deep conversations with people you don\u2019t know. Openness as a mindset is very interesting to see how society is structured n our head. How this huge fear that comes out of nowhere. Media says you should have fear now, that the new is threatening. I love my Grandma but when it comes to this topic I think omg we should not even talk about this topic and I have no idea how to change things. I think it\u2019s a lot of empathy, we had a huge fight...it was all about him not letting what\u2019s happen...not wanting to feel it...keeping it theoretical. The next day there was a change of perspective. It\u2019s also overwhelming for many people, related to make yourself vulnerable and allowing yourself to feel. It\u2019s a very delicate and sensitive how to do this contact and get them in touch with their feelings.\u201d", u'entity_id': 494, u'annotation_id': 8705, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'\u201cWe talked about the relationships that we have with people from Syria that we know and the experiences we have with them. We try to know why German people are so scared of foreigners and why the German people are sometimes so closed also in a friendship. For example my first time was not so easy to make friends here, german people are really closed the first time..they are not so open to stangers.\u201d', u'entity_id': 494, u'annotation_id': 8706, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 8707, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"I'm Noemi, and like you I was disappointed at the lack of empathy people around manifest when it comes to displaced populations.", u'entity_id': 9719, u'annotation_id': 8708, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"It gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?", u'entity_id': 19778, u'annotation_id': 8709, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'What follows is a long story documenting some of\xa0my experiences working as a caregiver on the Calais camp during March - May 2016.', u'entity_id': 536, u'annotation_id': 8710, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'In August 2015, as the first large waves of refugees started landing on the Greek shores and stuck along the border of Idomeni, I started this initiative of collecting and filling backpacks with first need items for refugees. At first, this has started very modestly, with a few friends organizing clothing donations through the Facebook https://www.facebook.com/%CE%A3%CE%B1%CE%BA%CE%AF%CE%B4%CE%B9%CE%B1-%CE%A0%CF%81%CE%BF%CF%83%CF%86%CF%8D%CE%B3%CF%89%CE%BDBackpacks-for-the-RefugeesSolutions-for-Homeless-148172338861553/?ref=bookmarks . At the beginning, I wasn\u2019t expending such a big response to my call, but volunteers -known and unknown- started visiting my clothing shop in Thessaloniki, bringing clothes and helping out to fill in the backpacks.', u'entity_id': 737, u'annotation_id': 8711, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'I\u2019d also like to volunteer in refugee camps and serve with my knowledge and experience there (I do work in an asylum center in Belgium once a week).', u'entity_id': 740, u'annotation_id': 8712, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.", u'entity_id': 23874, u'annotation_id': 8713, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'I know for certain that your experience and skills would be really useful to the volunteer organisations working down at the Calais refugee camp.\nMany volunteers have been working out there for the last year and there is a real need for access to professional mental health care.\xa0\nIt will be required even more when the French Authorities start their planned clearance of the camp. At the moment we do not know when this will happen. But the volunteers current support nearly 10000 refugees on the camp and will probably put their lives on the line to help protect the refugees and their things during the eviction. It will certainly be highly emotional and very fraught.', u'entity_id': 26040, u'annotation_id': 8714, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'An experiment to encourage spontaneous creativity for making a living as a migrant', u'entity_id': 703, u'annotation_id': 8715, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"what you're doing it's really interesting! I would like to know something more... how many refugees are already involved? Which are the main results? Refugees need to have particular skills to start?", u'entity_id': 29957, u'annotation_id': 8716, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30316, u'annotation_id': 8717, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'If you are interested, there is now University program called "Migration and Diversity" in this University: https://www.studium.uni-kiel.de/de/studienangebot/studienfaecher/migration-und-diversitaet-ma', u'entity_id': 30610, u'annotation_id': 8718, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'The Eur Cultural Foundation has a yearly programme for grassroots initiatives and a call for next year closing on Sep 20. The topic is "Moving Communities". @Tomma I thought you guys might be interested:', u'entity_id': 31149, u'annotation_id': 8719, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'mi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way', u'entity_id': 17482, u'annotation_id': 8721, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal.\xa0I wonder:", u'entity_id': 14969, u'annotation_id': 8722, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"@Franca Locati mentioned something I couldn't forget: she says you can sometimes\xa0help someone too much. She was\xa0refering to the way organisations work in providing services for newcomers. You two\xa0should definitely connect, Franca worked for quite some time in the Italian system of refugee reception, for\xa0the City of Milano, and managed to set up a platform for connecting a lot of\xa0language teaching organisations around to make a more coherent service to the people needing it.", u'entity_id': 19161, u'annotation_id': 8723, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20496, u'annotation_id': 8724, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'Summer 2015. It was nearly the end of August when Kos Island turned into a battlefield during a registration procedure. Hundreds of protesting migrants demanding quick registration began blocking the main coastal road. The local police attempted to break up the crowd with batons and by spraying foam with fire extinguishers. An officer was being filmed slapping and shoving migrants queueing outside the local police station.', u'entity_id': 550, u'annotation_id': 8725, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u'This is what is happening with a visionary project that is linking alternative and cooperative economy with the needs of refugees in Thessaloniki, Greece. It is a project of a group of people interested in the building of a cooperative economy network, in which I participate as an activist and a researcher of alternative economy. Having completed my PhD in economics in the last spring, I am now interested in continuing research, exploring links between solidarity economy and refugee solidarity movements in wider Greece.', u'entity_id': 792, u'annotation_id': 8726, u'tag_id': 2125, u'entity_type': u'post'}, {u'quote': u"The Jungle behaves the way it does because it is not an official camp. It's more like a favela: the first stop in a migrant's social journey, which mostly goes upwards in the social ladder. So, refugees are more free to cooperate, R2R, then they would be in an official camp. Their ingenuity and skills come into play: they make their own lives better, and become empowered at the same time. Your own story, it seems, goes much in the same direction.", u'entity_id': 9184, u'annotation_id': 8727, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u"Your plans sound great, let's speak again closer to the time that you come and see which groups/places/people you are interested in meeting here related to your project. Your services could be very beneficial to refugees so we can get you in contact with groups working with refugees or the social solidarity clinic of Thessaloniki which is another great initiative working on a community voluntary basis.", u'entity_id': 25462, u'annotation_id': 8728, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'placing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?', u'entity_id': 29375, u'annotation_id': 8729, u'tag_id': 2125, u'entity_type': u'comment'}, {u'quote': u'I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it\u2019s Headspace).', u'entity_id': 36387, u'annotation_id': 11695, u'tag_id': 1905, u'entity_type': u'post'}, {u'quote': u'Of 40 people around the camp, about half of us were \u201cparticipants\u201d, while the other half were organisers and hosts, an extensive team affiliated to Open State and the place.', u'entity_id': 36387, u'annotation_id': 11697, u'tag_id': 1906, u'entity_type': u'post'}, {u'quote': u'This is\xa0exactly\xa0the core idea of opencare: communities endowed with both care problems\xa0and\xa0care solutions, equipped with collective smarts and open knowledge.', u'entity_id': 26032, u'annotation_id': 8770, u'tag_id': 1152, u'entity_type': u'comment'}, {u'quote': u"'Are you on a mission? And how come that trauma - such a heavy word, such a serious matter - is your passion?' That is what people ask me when they hear about my tour, about me and my bus traveling through Europe to talk and teach about trauma and to try to soften the pain of trauma. 'No, I am not on a mission (that is a far too 'religious word for me to befriend with) - and yes, trauma is my passion, and I do have a message.\nI really believe that pain should come in the open. That it should be de-tabooed: we should know more about it, understand better what traumatic pain is, how it functions, how it takes possession of us, we should be able to look at it more closely, to be with it (for a while). Trauma, pain, fear ... we'd rather not experience it or watch it happen in someone else's life. It is like with 'death': we know it is part of our lives, we all have to deal with it, and yet we don't - because it's (too) uncomfortable. How to talk about human mistreatments, heavy physical pain, profound disrespect of your person, or situations where you felt like if your life was in danger? How to share the feelings of loneliness and hopelessness that go with such pain? We often do not know how to do that, and try to ban painful events and feelings from our minds, we want to forget about it.\nIt is something in pain itself too. We're hardwired to avoid and suppress pain. It helps us survive, it helps us to go on. Avoiding, minimizing and denying pain is our most natural, short term solution to deal with pain. It is a survival mechanism. It often takes a while, from seconds to minutes, to physically feel the pain caused by an accident, a car crash or a broken leg. Not feeling the pain gives us more time to save ourselves, to get away from danger. \xa0Out of the car, walk away and call the ambulance f.ex. On the long term, however, not feeling isn\u2019t very effective. Because it is impossible to heal from something we don't acknowledge. On the long term, suppressed pain comes back to us, like a boomerang. That is what trauma and traumatic pain is about: it is pain that doesn't seems to go away, pain that stays with us far too long, as a residue of what happened to us.\nI believe that this residual pain needs to be addressed more openly. \xa0\nTraumatic pain can be softened - and it should be. Because unresolved trauma makes us sick, depressed and heavy-hearted. It deregulates us, deeply and on many levels: mind, heart and body. We know that traumatic pain lies at the heart of most contemporary diseases, be they mental or physical, we know that trauma adds to almost every sickness as a major contributing factor. And yet ... the knowledge about trauma and how to address it to lower its dramatic impact on our lives is far from common.\nThat is what my tour is about: I want the world to be trauma-informed.\n\n\n\n\nI want people to come and look at the pictures on the bus and ask questions. I want them to learn about trauma and realize that healing is possible. We can all learn best practices regarding talking and coping. We can all learn to calm down and regulate a body in fight, flight or freeze modus. We can all learn techniques to stop nightmares and flashbacks. We can all learn to help traumatized persons recover. It often takes not more than 15 minutes to help people sleep better: help them release tension before they go to bed, by offering a relaxing breathing exercise, or teach them to intervene in their dreams by using their imagination, by rehearsing a different ending for their nightmare f.ex.\nWe are all on a mission: to a certain degree we all need to become trauma specialists. First, we need to deal with our own trauma's and those of the people around us. We need to dare to feel and face our pain instead of running away from it. Second, there's too much suffering in the world as to leave its resolution to the clinical field or therapeutic setting. Therapeutic knowledge should be accessible to all of us, it should not be protected and copyrighted. Therapeutic knowledge should be alive in the world, not only in shrinks\u2019 offices. That is why I do what I do: share my knowledge about trauma with you, share insights, methods and techniques from the field of trauma healing ... so that we can all, together, ease and soften the pain in our world. \xa0\nI don\u2019t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of \u2018self care\u2019: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, \u2026 It is long known that helping on this \u2018equal\u2019 level, is often more effective than any method or technique. It is also known that the relationship between \u2018therapist\u2019 and \u2018patient\u2019 is a major factor when it comes to healing. If we combine both, \u2018helping expertise\u2019 and \u2018being equal\u2019, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes \u2018us\u2019 helpers and \u2018them\u2019 traumatized people equal human beings, fellow human beings. It restores humanity.\nI\u2019m now in the middle of planning my first big tour: driving down the Balkan route and visit Greece in December 2016 / January 2017. If you\u2019re reading this and you want to support Trauma Tour, please check out my website, there\u2019s a list of things you can do to help me : call me in for a training, be my local host on my way down to Greece, put me in contact with people who might need me \u2026 An easy and very effective way to support Trauma Tour is to make a financial contribution - I thank you for that!\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.", u'entity_id': 795, u'annotation_id': 8778, u'tag_id': 1153, u'entity_type': u'post'}, {u'quote': u'Like @Carolina, I am interested, mostly in the traveling tour. @noelito pointed me years ago to a project by European Alternatives called TransEuropa Caravans where a group would go from place to place to meet initiatives and work out storytelling formats for connecting them. See this video as example:', u'entity_id': 21417, u'annotation_id': 8777, u'tag_id': 1153, u'entity_type': u'comment'}, {u'quote': u'Hey, I now think this post may have slipped attention because it doesn\'t have "boat clinics" in its title!\nThanks for getting the story, Natalia. I find it meaningful that while it was one small idea in the beginning, it has evolved into a public program due to involvement of district administration, WB and UNICEF - all of which helped it scale and work out a run-of-the-mill approach.\nI found this telling quote by a gov employee: "The government has the resources and the mandate to create a thousand Ships of Hope that will bring health to people who are at the receiving end of a highly volatile and moody river. We need the\xa0 humility and the willingness to learn from those who know better"', u'entity_id': 7189, u'annotation_id': 8776, u'tag_id': 1153, u'entity_type': u'comment'}, {u'quote': u'There\u2019s not much focus on Asia in our research - therefore, I\u2019d like to present you some inspiring initiatives from India and Nepal, which present a very different approach to delivering care: actually delivering it.\nFirst, of them is MV Akha, a floating clinic that travels along Brahmaputra Netri to the inhabitants of the saporis/the islands. One look at the map of the region is enough to understand how difficult for them it would be to access hospitals and doctors otherwise. 2500 islands sit on the Indian part of the river, which starts from the Tibetan mountains and flows through the Assam region, being a home to 3 million people, 10% of the region\u2019s population.\nThere are numerous reasons why providing these places with health care is particularly difficult: due to huge shortages of doctors in India to start with (0.7 per 1000 people), shifting territories of these islands, unstable population and difficult living conditions: they\u2019re connected to the land by boats and suffer from frequent energy and drinking water deficit. Not to mention strikingly high numbers in maternal and infant mortality.\nSanjoy Hazarika pitched the idea of floating clinics to the World Bank in 2000 and received their support - 20,000 dollars to start with. One year later the first boat sailed to bring care to the Assamese, and until today, 14 more followed. The project was eventually joined by the state, which established a public-private partnership with the trust and started funding the offered service. Each month around 20.000 people in total are reached by these facilities.\nSome of the doctors who joined the ships helped to improve their service. One of the keys to success is frequency - by ensuring that each island is visited at least once a month it is possible to take good care of immunization and condition of pregnant women. They also bring the basic medicine, which is cheap in India - but if one needs to hire a boat to get it, the costs soar.\nAnd the service provided by the boat is free - the funds provided by the state amount for 72 400 000 million rupees per year - which, after covering the costs of the boat and the staff, means that there are 480 rupees per person left. Around 5 dollars per year.\nMore about the project here: http://www.c-nes.org/programmes/boat-clinics\nPhoto comes from\xa0http://www.tehelka.com/2014/07/boat-clinics-provide-healthcare-to-3-million-people-in-assams-river-islands/', u'entity_id': 708, u'annotation_id': 8775, u'tag_id': 1153, u'entity_type': u'post'}, {u'quote': u'First, of them is MV Akha, a floating clinic that travels along Brahmaputra Netri to the inhabitants of the saporis/the islands. One look at the map of the region is enough to understand how difficult for them it would be to access hospitals and doctors otherwise. 2500 islands sit on the Indian part of the river, which starts from the Tibetan mountains and flows through the Assam region, being a home to 3 million people, 10% of the region\u2019s population.', u'entity_id': 708, u'annotation_id': 8774, u'tag_id': 1153, u'entity_type': u'post'}, {u'quote': u'Where:\nHungary\nWhen:\n2013\n\xa0\nWho:\nR\xf3bert Csord\xe1s, Gergely Jo\xf3s, Tibor Szab\xf3\n\xa0\nAbout:\nMobilECG is an opensource clinical ECG. It is designed to record with 2 to 10 wires for up to 5 days. The device can be connected to a mobile device wirelessly.', u'entity_id': 762, u'annotation_id': 8779, u'tag_id': 1154, u'entity_type': u'post'}, {u'quote': u'Curve in response to the #HackOnWheels brief.\xa0\n\n\ncurve-hero-nelson-700.jpg700x1078 184 KB\n\n\nAlso are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/cheap materials/open source design)? I think it started in New York but I understand there are initiatives\xa0here in Glasgow now too.', u'entity_id': 23379, u'annotation_id': 12937, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u"You might want to check out the approach of Living Streets (in Ghent, Belgium) - they\xa0rethought mobility (car free areas in the city)\xa0through a multiyear project . What I learned from them is that it takes sustained effort and some competent leadership that understands both civil service, how policies are made and incentives of the community. In that setup, the convener was not the city itself, but an independent organisation. @Living_Streets can correct me if I'm wrong.", u'entity_id': 10471, u'annotation_id': 12936, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc.\n\n@WinniePoncelet, it could be very good if you could elaborate on why you don\u2019t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get?\n\nYou have a good point,@WinniePoncelet, \xa0we could imagine raising funds to have a FES bike that people could try locally.\n\nI\u2019ve learned two things recruiting wheelchair users as testdrivers\n\n\nThere is a perception that it may be physically harmful\nPeople are afraid of traffic. There is a perception that there are nowhere to use the a Handbike\n\n\nAs for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.)\n\nAs for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling). \xa0@Francesco Maria ZAVA\xa0and others we could\xa0work on this", u'entity_id': 23387, u'annotation_id': 12935, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u"Thanks @Rune, impressive how people find their way and maybe mobility doesn't have to be such an exclusionary issue after all. \xa0I'd appreciate if you, your team and the WeMake team also share this with some of the people engaged so far in OpenCare,\xa0more minds put together will come up with super insights and helpful advice.. Let's do this.\n\nPing @Rossana_Torri to help us reach to some key networks in the city. Thanks!", u'entity_id': 10564, u'annotation_id': 12934, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u"The other day cycling home, I saw a person, probably living with spinal cord injury using his hands to pedal, a really rare sight in Italy. I\u2019m a keen cyclist for transport and leisure, but my profession is also research in devices enhancing the mobility for people with physical limitations. Therefore I feel an obligation to spread the news about recent advancements in cycling for physically challenged. Have you heard about FES cycling?\n\nFES - short for functional electrical stimulation - can be used to activate paralyzed muscles by impulses imitating the nervous system in the most natural way possible. We have come a long way with our research and it is possible to use this technique to let people with paralyzed legs cycle again. For some reason there are very few people who know about this so I\u2019d like to share this knowledge with you.\n\nWe cycle to move, but also to maintain fit. It can be both fun and functional. But, if your legs don't obey you anymore, you will probably not consider it a possibility. Paralyzed legs can result from an accident breaking your back, a stroke or a sneaking disease like the multiple sclerosis. \xa0\n\nPeople caring for and curing you need to be very pragmatic, and you with them. Mobility then becomes reduced to passive transport, a dietetic approach to avoiding getting fat and medication of pressure sores and other side effects from lack of physical exercise. That\u2019s where the publicly unknown FES research comes into play. Years of clinical research have consolidated the benefits, but we need to spread the news and understand more about it. Some people may already have heard of handbikes. They allow you to cover greater distances than manual wheelchairs. They are special tricycles where you use the hands for pedaling.\n\nFES, on the other side, is applied via adhesive electrodes or incorporated in bicycle shorts. The stimulus activates the muscles of the buttocks and thighs in sync with the ride. \xa0However only the leg muscles can challenge the cardiovascular system to get physically fit. Some people with for example spinal cord injury (paraplegia) may be able to use FES for activating these large muscles. \xa0With FES cycling they can cover greater distances with greater speed and due to activation of large muscles they get (bene-)fit and feel physical well-being. The research community has tried to promote a more widespread use of FES cycling by arranging races (see here) and publications with the user's statements of the pros and cons\xa0(see here).\n\n\nbb.jpg1122x520 409 KB\n\n\nHow can we build research into practice or at least make options much more accessible?\n\nThe question is how to help people who have become paraplegic or their families know about the existence of such possibilities. FES bikes are quite expensive so where to go to try them? Many places and cycle lanes are missing so it requires some changes to infrastructure as well. But as long as nobody uses them it's a vicious circle. Therefore we need more awareness to reduce cost, change infrastructure and increase inclusion in the cycle community\n\nEven handbikes which are more popular can\u2019t be bought in a normal bicycle shop, but rather directly from a few specialized companies. The lack of marketing incurs high costs to manufacturers and hence to clients.\n\nMy own group\u2019s response as research and practitioners is to create a culture to promote this change, a project in the making. How can we promote actual experience based dialogue between users (who are maybe hackers) and researchers? There is an international community of researchers, so there should be a good chance of of finding local experts. As someone with a disability, you could connect with them and hack - evolve - test collaboratively cheap functional solutions in a healthcare hacking space. Dr Fitzwater, who is both a researcher and FES cycler, reports on the need to make benefits enjoyable in addition to positive medical outcomes: \u201cThe FESC function should be capable of being used on the open road with or without friends and family and be easily usable without any more assistance than that already required for the activities of daily living\u201d.\n\nWhy should you, me or anyone care about the future of research? you want to see your tax money spent well, don\u2019t you? And most importantly, this could be you or a relative who would like to go for a ride and have drastically limited options. Check out the coming cybathlon for more information and help us spread the news.\n\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 201", u'entity_id': 759, u'annotation_id': 12933, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'@winnieponcelet Compared to many countries in Africa, the approach used there is at an avanced stage of policy designed to take care of people with mobility limitations.', u'entity_id': 37262, u'annotation_id': 11799, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u"really like AdaptiveDesign because it's ongoing - whereas the RSA awarded ideas in initial stage. For #HackOnWheels I think the WeMake crowd in Milano could tell us if there is someone interested in making a connection with an opensource indoor wheelchair for disabled?\xa0\n@silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through\xa0mobility ramps- not indoor though..).\nOr @Gehan do you have a connection already with Adaptive Design or\xa0RSA?", u'entity_id': 24832, u'annotation_id': 8797, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u"Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive\u2026.unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.\nSo we need to figure out a soft mobility map which can help us demonstrate that you don't have to stay home or take your car to the gym to work out. You can get around in many ways and keep fit at the same time.\nWe need\n\n\nnavigation for soft mobility with possibility to set limitations\n \n\nwaypoints of broad interest (not just googles shops, restaurants and gas stations)\n \n\nindications of feasibility on a user defined level (accessibility, interesting way, playgrounds, etc.\n \n\n\nWho's in?", u'entity_id': 779, u'annotation_id': 8796, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'Community Conversations can have an impact in various ways, from discussing challenges, catalyzing collaborations or changing the direction of the project and creating new initiatives.\nThis was the case for Sara\xa0Savian\xa0and Mauro Alfieri, creators of reHub. The glove designed for proprioceptive rehabilitation and to recover movement fluidity after an injury.\xa0 It allows the patient to record and report exercises, data- such as hand position and fingertips pressure.\nIn 2014 Sara\xa0Savian\xa0and Mauro Alfieri started their journey with a \u201ctest on sensors \u201cand they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.\xa0 The intent was to explore how it can be used? How can it add value and be of use socially?\xa0 What could be built on this foundation? These discussions could change the course for many participants.\nSara and Mauro not only had many questions answered, but they left with the idea of going back to the drawing board and creating something that would be beneficial to society.\nA conversation between a physiotherapist and someone suffering from hand disability created inquiry for Sara and Mauro. They exchanged and shared thoughts on their project, how could it be of use and that led to further discussion. It was the trigger point for them and a stepping stone for their project. We can\u2019t capture every discussion that took place as dialogue is woven into many discussions. But this one interaction planted the seed for what is now reHub.\n\xa0We asked Sara to recollect this conversation:\nJohn: "I suffer from a hand disability that limits my activities of daily life. Self-sufficiency is greatly reduced and hinders the quality of life for me. Constant monitoring of my movements and joints must be done frequently to evaluate my progress by and going back and forth as an outpatient for evaluations. This interferes with my daily activities\u201d*\nPhysiotherapist: \u201cThere has been an advancement in technologies in the rehabilitation to help patients achieve maximum recovery outcomes. In Italy, physiotherapists have no access to digital tools to evaluate rehabilitative progress for hand movements. Having instant access to this therapy anytime would be greatly beneficial.*\nWe asked Sara and Mauro how this conversation altered the course for reHub.\nSara: \u201cThis made us re-evaluate our project in a variety of ways and prompted us to think in broader terms and combine the "test on sensors" with solving a problem. We know that there is a lot of learning that needs to be done when you put the device in the hands of people that are just things you would not expect".\xa0\nMauro: From this discussion, Sara and I saw the opportunity offer a solution and an experience of an emerging area of wearable technology together with the sensing technology and decided to create a device that could be delivered in a rehabilitation approach to support patients\u2019 and to monitor hand rehabilitation. From listening to challenges that are faced on a daily basis, and realizing how painful it is for the patient and family. We need to work with them to help co-create with us\u201d.\nWith the project in its early stage, Sara wanted to share this:\nSara: \u201cThere is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.\u201d\nWe asked what\u2019s next for reHub.\nSara: "We know that rehabilitation is time-consuming and demotivating and we plan to change that with a reHub device to empower patients through their therapy. Rehabilitation is often costly, by making it open source, it\u2019s affordable and accessible for people who are living with limitation and this could drastically improve their mental well-being during the road of recovery\u201d. This will allow the vast majority of patients to be sent home with a rehabilitation program to practice on their smartphone or tablet."\nThe reHub team is taking a broad approach in this area and looking for users and a community that will benefit and help develop different options: sport, gaming, educational, medical.\nWhy is it important to work with the community to further develop reHub?\nSara: "Spending time with a community, or patients that will benefit from what you\u2019re creating is looking at the problem in a human-centered way and it highlight\u2019s what\u2019s needed instead of just relying on responses to questions. Spending time with people in the area of use is a really important step in the design process. So we\u2019re back to the drawing board. We need to know what from the user\'s perspective so we can design with them in mind."\nCo-creation, it matters. There is the emotional and functional connection that people have to a medical device. As far as functional, understanding how people use things, what they need to get done daily. \xa0When we think of medical devices we initially think of accuracy, consistency, making sure it delivers the expected results. These are crucial reasons why design should be human oriented.\nMauro Alfieri: \u201cWe thank all the physiotherapists we have had a chance to meet with \xa0which could effectively confront the future of this project, orienting it to a continuous use in proprioceptive physiotherapy."\nIf people can\u2019t achieve expected results due to a design issue or flaw, then that\u2019s obviously going to have a clinical impact. From a functional aspect, understanding how people use things does matter. This is where engineering, design and the community will benefit and need to work hand in hand to understand these components. It\u2019s crucial to consider human emotions when designing medical products. Often, it\u2019s the emotional connections that people have with respect to the design. Is it flexible? The weight, how it feels, is it aesthetically appealing?\nThen, of course, cost and accessibility that make people gravitate toward certain devices as opposed to others. With the joined forces of diverse backgrounds of Sara and Mauro, reHub will be addressing all these concerns.\nreHub-goal-oriented effective rehabilitative treatment and experience that will help patients return to family, job, community and resume regular daily activities.\nMore updates to follow.\n*The name of John and Physiotherapist have been used to maintain privacy.', u'entity_id': 861, u'annotation_id': 8795, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u"@Costantino and the WeMake crowd are exceptionally skilled at changing their space on the fly. In this they remind me of @Matthias , who dreams of a world in which everything is made by Euroboxes mounted on Europallets. Given a forklift and trucks you can evacuate a large office or home at a moment's notice, or reconfigure your space on the fly.\xa0\nIn terms of the digital space, the same modularity concepts apply. People should use the same tools whenever possible, like in WeMake,\xa0to facilitate interoperability and reconfigure your\xa0workflow\xa0on the fly.\xa0\nOf course this has got nothing to do with care. It's just what work well done \u2013 any work \u2013 looks like.", u'entity_id': 6650, u'annotation_id': 8794, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 8793, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'reHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance.\nReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.', u'entity_id': 33751, u'annotation_id': 8792, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u"These notes and pictures were taken at WeMake in Milan during the meetings held on april 11th 2017 for the openrampette project\n\xa0\nAt WeMake people have being busy with a opencare project about customized ramps to make more shops accessibile to wheelchairs in Milan. It is called openrampette and is being developed with the Comune di Milano, another opencare partner.\n...\nThe group has a discussion about best ideas on the prototype and how to involve citizens of Milan in the design phase. There\xa0 are also needs to develop an app for openrampette.\nThe discussion goes deep in understanding whether the job consisted in reviewing (advanced prototyping) or development. The problem is that there are not enough indoor skills to develop for mobile. Even IoT (Internet of Things) would have been interesting, but there were no news from the groups.There is a proposal about creating a course for app developers and an internship, but it doesn't seem feasible. The UX (User eXperience) approach is a main issue, but a simple \u201cnice, try, next\u201d way cannot work. There is agreement on the fact that the ramp should stay light and not, for instance, 40 kgs heavy.\n\xa0\nIn a presentation of the project there is a interesting discussion about understanding what is not included in the procedures (the rules enforced by the Municipality), and in the advantage of accessing the database mapping the ramps in the city.\nSome hypothetical cases are discussed.\nThe idea to work on is about a \u201cramp on call\u201d that occupies the ground for a very little time, the one needed for the disabled to access the shop and buy stuff.\nOtherwise there is the average ramp, already available where big shops, or post offices are.\nThe results from the questionnaires about the absence of the ramps before many shops in Milan are considered.\nThere is need to talk with two type of publics; on one side the shop retailers, on the other the customers on wheelchairs. There is the proposal of a survey before and after the meetings.\nSome last work is put on schedule for the end of august, as prototyping, the website, documents, the wiki, the video, etc..\nAll the effort is designed for the local side of the city and then it might be replayed in further city contexts.\nA solution for \u201ccalling\u201d the ramp would be to create a button to push.", u'entity_id': 33749, u'annotation_id': 8791, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u"You might want to get in touch with members\xa0in Milano for a slightly different problem and approach -\xa0they zoomed in on the\xa0problem\xa0of\xa0wheelchair mobility and how\xa0disabled\xa0people can't push their own wheelchairs and\xa0be on their own. Better designed\xa0wheelchairs\xa0would ideally increase one's autonomy and freedom to move. It takes\xa0out of the equation the need to be accompanied at any step,\xa0which is after all a practical reality identified by the group in discussions and something which can affect how others treat you. \xa0It would be interesting to study how perspective differ\xa0- what goes on in people's heads when they see someone helped versus\xa0when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here's the idea where you can get in touch for more info.", u'entity_id': 8596, u'annotation_id': 8790, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u'Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable.\nThe story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017.\n\nIn November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject.\nLisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies.\nIt was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders.\nCristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity.\nThis is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight.\nListening\xa0it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors. \xa0\xa0\nIncluding as the collaboration with the trade association got closed we\u2019ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers.\nGoing where innovation beats\xa0we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into\xa0co-design sessions pivoting around their necessities may generate unexpected outcomes.\nDealing with collective intelligence\xa0is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it.\nThis is where we stand now and the next steps are:\nCo-designing / mobilizing resources\xa0of course we will not predefine outputs, but rather keep the sessions open to any outcomes.\nPrototyping policies\xa0by monitoring and evaluating this experimentation.\nWe are aware that talking about \u201cenforcing\u201d a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process.\xa0Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions.\nIt would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.', u'entity_id': 819, u'annotation_id': 8789, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'The story begins with the city administration itself: in 2011 it was part of a European program\xa0about the transition to a climate neutral city. The result was that we should rethink the mobility system in order to become climate neutral. Beginning of 2012, the city of Ghent started a transition arena. Pieter was one of the 20 people involved in this arena, as he used to work for the National Railway Company and involved in sustainable mobility development. These 20 people were brought together, and\xa0had the opportunity to be critical on the current system but also had the power of imagining a future vision, how it could be better.', u'entity_id': 33746, u'annotation_id': 8788, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'and visually impaired people is a clear unmet need. However, most blind and visually impaired people want to go out and enjoy independent mobility.\nThe environment in which we live is becoming increasingly complex. Even a journey across a city \xa0requires a range of skills including being able to avoid obstacles on the pavement, to walk in the right direction, play a sport and the list goes on. These tasks may seem trivial, but for someone with a vision impairment, this is a challenge and a skill that needs to be learned. SoundSight enables the development of a hearing talent that compensates for the missing eyesight.', u'entity_id': 701, u'annotation_id': 8787, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u"Thanks for sharing this @Rune. I cannot begin to imagine how good it must feel for someone with paralyzed legs to bike independently\xa0again.\xa0We have\xa0good biking infrastructure in my city/Belgium in general, but I rarely see handbikes actually.\xa0\nAbout where to try\xa0the FES bikes: are the bikes\xa0customized to the user? Or could you imagine a network of users who are up for letting others test their bike from time to time. On top of that people meet and connect, they are more involved and it's not a huge cost for anyone.", u'entity_id': 19646, u'annotation_id': 8786, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u"it's really amazing, nice job @Rune, in my country there is a lot of people who suffer from weakening leg muscle and poliomelite. \xa0Those people are usually left aside and need someone's hand to move. On the other side, infrastructure and access to office, public area are not yet developed.", u'entity_id': 13970, u'annotation_id': 8785, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u'BOM\n\n\nArduino Pro Mini https://www.sparkfun.com/products/11113\n \n\n9DOF IMU sensor stick https://www.sparkfun.com/products/10724\n \n\nCopper tape (or any other small conductive material) \n \n\n3 resistors (1~10 mega ohm, big resistance is better) \n \n\nWires, tape \n \n\n3D printer\n \n\nLink: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/\nhttps://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es', u'entity_id': 512, u'annotation_id': 8784, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14204, u'annotation_id': 8783, u'tag_id': 2126, u'entity_type': u'comment'}, {u'quote': u'If you are paralyzed, you are most likely using a wheelchair, and if you use a wheelchair, then you need someone to push the wheelchair in order to help you navigate through the city. \xa0\xa0Not only does this make the challenged person feel like a burden, but it adds another layer of inconvenience, which is privacy. \xa0\xa0\xa0Due to the nature of how most wheelchairs are designed, the person who aids the person who needs care, has to accompany this person everywhere, limiting the chances of being able to navigate the city or any place independently while enjoying privacy and a little independence. \xa0The challenge gets worse in places like train stations, airports, metro stations, basically any place with stairs, an over crowded, and the requirement of different modes of motion. \xa0Would it be possible to think of a mechanical system that can be attached to all \u201cstandard\u201d wheelchairs, \xa0that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits? \xa0\xa0Any thoughts?', u'entity_id': 689, u'annotation_id': 8782, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'Until doing my masters, the disabled people were an unknown phenomenon to me. They were not seen, not talked about. I was introduced to young people suddenly wheelchair bound with very limited personal independence due to a spinal cord injury. \xa0They were really nice people and kindly explained about the complexity of such sudden change in abilities and about the need to regain some functional movements.', u'entity_id': 516, u'annotation_id': 8781, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'trying to get to the UK', u'entity_id': 39328, u'annotation_id': 11648, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u'moving around from site to site', u'entity_id': 39328, u'annotation_id': 11618, u'tag_id': 2126, u'entity_type': u'post'}, {u'quote': u"articipants (living with disabilities) will have limited mobility and time. Any ideas of best 'crack'?", u'entity_id': 13704, u'annotation_id': 8798, u'tag_id': 1156, u'entity_type': u'comment'}, {u'quote': u'@Michielstock has met with Noel Carrascal to help out with molecular modelling\nAfter the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing\xa0a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with\xa0a broader goal in mind.\xa0At some point\xa0it may help the insulin research\xa0(or vice versa), but it is not the goal.\nThe biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.', u'entity_id': 31639, u'annotation_id': 8802, u'tag_id': 1157, u'entity_type': u'comment'}, {u'quote': u'The challenge here is to design such linker as such the complex can be formed. To this end, Noel writes his own software to do mechanistic molecular modelling. He computes all the molecular (polar, Vanderwaals, \u2026) interactions between amino acids to finally obtain the stability of a complex. For a given linker, this is represented by a set of (sparse) matrixes quantifying the strength of the interactions between the amino acids.', u'entity_id': 6379, u'annotation_id': 8801, u'tag_id': 1157, u'entity_type': u'post'}, {u'quote': u'Besides that we still want to realise our modular furniture system at the ICC Berlin. The Malteser are very interested too and already said that 30 of them will be there and help with the workshop!\xa0We might get a sponsorship, but it would still be great if we could raise the money via our startnext Campaign. We\xb4re still happy about support :)! https://www.startnext.com/sava', u'entity_id': 27799, u'annotation_id': 8803, u'tag_id': 1158, u'entity_type': u'comment'}, {u'quote': u"The arrival of ResCure-ers brings opencare work at WeMake to a new level. Different local settings can be understood now as network localities coexisting and sharing the same space-time dimensions. The classes are shared with WeHandU and inspire more makers at once. The understanding of how others work give a day by day and specific shape to own projects. By what they talk about and what they do, \u201cMaking for opencare\u201d discourse becomes a visible and touchable meaningful concept for different people involved in such exchange of knowledge. A large community is at work these days here...I have counted about 40 people..It's amazing! Teens, Senior Makers, opencare staff, makers and designers, students and trainees..all together.", u'entity_id': 864, u'annotation_id': 8807, u'tag_id': 1159, u'entity_type': u'post'}, {u'quote': u"@Costantino and the WeMake crowd are exceptionally skilled at changing their space on the fly. In this they remind me of @Matthias , who dreams of a world in which everything is made by Euroboxes mounted on Europallets. Given a forklift and trucks you can evacuate a large office or home at a moment's notice, or reconfigure your space on the fly.\xa0\nIn terms of the digital space, the same modularity concepts apply. People should use the same tools whenever possible, like in WeMake,\xa0to facilitate interoperability and reconfigure your\xa0workflow\xa0on the fly.\xa0\nOf course this has got nothing to do with care. It's just what work well done \u2013 any work \u2013 looks like.", u'entity_id': 6650, u'annotation_id': 8806, u'tag_id': 1159, u'entity_type': u'comment'}, {u'quote': u'Do you think the mobile version of the tiny home would be suited for a larger event (60+ people)? Nadia may have told you, we are looking into modular structures but also environmentally friendly, so that after the event when time comes to wrap up there is no waste.. Like Alberto, I am curious about the climate suited and other favourable or unfavourable conditi', u'entity_id': 14070, u'annotation_id': 8805, u'tag_id': 1159, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20069, u'annotation_id': 8804, u'tag_id': 1159, u'entity_type': u'comment'}, {u'quote': u'@Michielstock has met with Noel Carrascal to help out with molecular modelling\nAfter the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing\xa0a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with\xa0a broader goal in mind.\xa0At some point\xa0it may help the insulin research\xa0(or vice versa), but it is not the goal.\nThe biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.', u'entity_id': 31639, u'annotation_id': 8810, u'tag_id': 1160, u'entity_type': u'comment'}, {u'quote': u"Let me rephrase this to see if I understood correctly:\xa0your work with machine learning uses the output of Noel's computational work (matrices) as input, and when you have sufficient data, you can 'shortcut' the work by using those matrices directly to generate new matrices. In essence, automating, optimising and speeding up the modelling that he does now. Am I\xa0in the ball park?\nDid you make any plans for what's next?", u'entity_id': 6920, u'annotation_id': 8809, u'tag_id': 1160, u'entity_type': u'comment'}, {u'quote': u'The challenge here is to design such linker as such the complex can be formed. To this end, Noel writes his own software to do mechanistic molecular modelling. He computes all the molecular (polar, Vanderwaals, \u2026) interactions between amino acids to finally obtain the stability of a complex. For a given linker, this is represented by a set of (sparse) matrixes quantifying the strength of the interactions between the amino acids.', u'entity_id': 6379, u'annotation_id': 8808, u'tag_id': 1160, u'entity_type': u'post'}, {u'quote': u'A very basic event which happened in a lot of cities over the last years, including\xa0where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one\xa0would\xa0stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in.\nMore about this and a video:\xa0https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/', u'entity_id': 14948, u'annotation_id': 8812, u'tag_id': 1161, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 657, u'annotation_id': 8811, u'tag_id': 1161, u'entity_type': u'post'}, {u'quote': u'and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time.\xa0There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?', u'entity_id': 6850, u'annotation_id': 8815, u'tag_id': 1162, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 8814, u'tag_id': 1162, u'entity_type': u'post'}, {u'quote': u"Not sure how you'd bring in clients;\xa0if council funded, you'd definitely need to comply with regulations, equally if private you'd need to comply and attract customers. (Remember the market is competitive and low return, and council-funded clients will barely cover your minimum staffing and food costs.) Perhaps voluntarily attending such an entity would work?", u'entity_id': 26047, u'annotation_id': 8816, u'tag_id': 1163, u'entity_type': u'comment'}, {u'quote': u'Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?', u'entity_id': 6459, u'annotation_id': 8832, u'tag_id': 1164, u'entity_type': u'post'}, {u'quote': u'Making the \u2018numbers look pretty\u2019 (and less in the red!) has been tough and we\u2019re at a point where we don\u2019t know if we can make it work. We see clear potential but what happens as people have less money to spend? My hunch is that for localised manufacturing to work we need structural measures to offset the realities of the global marketplace and explore ways of interfacing and contributing to the growth of non-monetary economies.', u'entity_id': 23520, u'annotation_id': 8831, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'If we can find this path, then the potential for replication is obvious. If not, I fear that the new "maker economy" will be so much hot air, and digital making will suck resources out of localities and neighbourhoods, just as have so many other waves of supposedly "decentralising" technologies.\n"Makers" has a website here: http://makersontheedge.com. We sell things that we and local people have made, plus interesting old, curious and unique things that we acquire. What we don\'t sell is mass manufactured stuff. We also run craft and making workshops. Oh, and if you want to come and visit, and maybe to a Makers residency, we have a self-contained flat above the shop which we rent on AirBNB here! https://www.airbnb.co.uk/rooms/13081880?preview', u'entity_id': 14151, u'annotation_id': 8830, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u"What you are then doing is interfacing for projects to monetize excess capacity in their network. Instead of having to invest heavily into logistics, marketing, sales, everything that comes with selling something, you can rely on a 'service' like yours.\xa0I think this ties in nicely with\xa0the discussion here on business models for The Reef. Diversity is hard to do early on, but interfaces make it a little easier.", u'entity_id': 23131, u'annotation_id': 8829, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u"The traditional solution is commission on sales. We found out quickly that it does not work for a company like Edgeryders, small and new and trying to make way. Reason: we agreed we would try to grow based on overdelivery. We would compensate the risk taken by clients in hiring us by being excellent value for money. This means we would be hurt by taking 10% of or budget out to pay for the commission: we need all the money to provide the service. Essentially, we are foregoing commission to invest in reputation.\xa0\nThe problem is mitigated by none of us being\xa0only\xa0a salesperson. Each person in ER gets intrigued by a project, and tries to sell it because she means to then work on it. With us, the project's\xa0champion must lead it; almost always the champion is the one closing the deal, or having worked a lot on it. So we can compensate this person by paying her a little more generously once the sale has been made. It's like an informal commission.", u'entity_id': 23247, u'annotation_id': 8828, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'\u201cwellness\u201d becomes commodified.', u'entity_id': 521, u'annotation_id': 8826, u'tag_id': 1164, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11456, u'annotation_id': 8825, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'Monetization and how it affects our view on people around us: that we cannot be more intuitive because we think about how we can be most effective', u'entity_id': 494, u'annotation_id': 8824, u'tag_id': 1164, u'entity_type': u'post'}, {u'quote': u"Hacking Utopia, a studio course on product design for social and demographic change at UDK. (it's tied to the OpenCare project). They're currently coming out of the research phase in which they have been guided through a process of identifying and understanding where they could make meaningful design interventions (products and or services). Today they're going to summarise what they have learned and what they want to build (I'll post documentation online here later). Next they will be actually designing the products and I think the process above could be very helpful. Would you be up for joining a skype call where we help them to think through the business modelling/sustainability design for their products?", u'entity_id': 26011, u'annotation_id': 8823, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'A problem in ER is turning out to be how to reward the quite difficult and not always fun activity of making the sales. Not rewarding encourages waiting around for someone to walk in with a contract; rewarding it seems quite awkward, at least before you have some hard data on what it costs to do that kind of work (accounting for all the failed pitches). How do you guys do it in Sensorica? Does your accounting award a commission to people making successful sales? How much, if I may ask?', u'entity_id': 23095, u'annotation_id': 8822, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'overview of how you actually generate revenue because for a lot of people it is kind of a black box', u'entity_id': 21736, u'annotation_id': 8821, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'@Nadia "I am looking at collaborative ways of generating revenue\xa0for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It\'s tricky.\xa0"', u'entity_id': 19801, u'annotation_id': 8820, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u"I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here's where the course is being shaped, feel free to jump right in:\xa0https://edgeryders.eu/en/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course", u'entity_id': 16967, u'annotation_id': 8819, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'As an incredibly diverse community, the range of experience and knowledge about building economically sustainability projects amongst members ranges from "where do I even begin" to "I just sold my 3rd company". Also, there are many different interpretations of "economic sustainability" and strategies for achieving it. Moneyless crowdfunding with Makerfox anyone?', u'entity_id': 4195, u'annotation_id': 8818, u'tag_id': 1164, u'entity_type': u'post'}, {u'quote': u'For it to be value driven, there need to be people that are ready to pay for the service.', u'entity_id': 16291, u'annotation_id': 8817, u'tag_id': 1164, u'entity_type': u'comment'}, {u'quote': u'think it will make for a meaningful session.. Especially for people who know each other a little but perhaps not enough. We stand to learn a lot about others through those conversations.. tabu in most contexts.', u'entity_id': 27413, u'annotation_id': 8835, u'tag_id': 1165, u'entity_type': u'comment'}, {u'quote': u"It would be helpful I think. It's messy and many relationships break over this topic. If we are to have a thriving, truthful space it is important to figure out. Let's have a chat about this early next week?", u'entity_id': 27232, u'annotation_id': 8834, u'tag_id': 1165, u'entity_type': u'comment'}, {u'quote': u'I\'d like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma\'s through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings "Circles of openness".', u'entity_id': 6401, u'annotation_id': 8833, u'tag_id': 1165, u'entity_type': u'post'}, {u'quote': u'Or are they bleeding out money?', u'entity_id': 20474, u'annotation_id': 8838, u'tag_id': 1166, u'entity_type': u'comment'}, {u'quote': u'microwelfare. we sill live in a "normal way"...but we share time, infromation, products, \xa0skills, decision maing on shared purchases...anycase it is a light version of what you think.', u'entity_id': 24390, u'annotation_id': 8837, u'tag_id': 1166, u'entity_type': u'comment'}, {u'quote': u'In regards \u201cmicro-welfare\u201d and mutual support, have you communized your money or is there a separate fund that members pay into for these kinds of things? This is something we\u2019ve been discussing for our group and haven\u2019t figured out quite how to do it with the constraints of an economy like NYC. Have these things created a situation where people are able to work less or not at all?', u'entity_id': 21004, u'annotation_id': 8836, u'tag_id': 1166, u'entity_type': u'comment'}, {u'quote': u'Agree with most everything @Natalia_Skoczylas and @Noemi are saying. The only difference is that I do appreciate that Uber/Airbnb create some value for local communities, by giving some extra freedom to people on the ground. For example, say\xa0you notice that there is a long queue for taxis at your local airport on Friday nights.\xa0You can then in principle step in as an Uber driver and make yourself availabe for that time slot, if you need the money more than the time. It is a market clearing mechanism, but a clearing market is, in itself, a good thing. What\'s bad is a market underpinned by asymmetric power relationships. But we have that anyway: taxi drivers telling people "you can\'t work here, this is our turf" is an act of violence. It is no coincidence that most Uber drivers in Brussels are\xa0Arabs: plenty of unemployed/underemployed young Arabs in town, and\xa0Uber lowers the threshold for them to enter the business. Without it, driving for money is off limits for them. But you have all heard this before, many times.', u'entity_id': 19066, u'annotation_id': 12938, u'tag_id': 1167, u'entity_type': u'comment'}, {u'quote': u'Then, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.', u'entity_id': 859, u'annotation_id': 8840, u'tag_id': 1167, u'entity_type': u'post'}, {u'quote': u'2) Platforms tend to become a natural monopoly due to the network effect.', u'entity_id': 829, u'annotation_id': 8839, u'tag_id': 1167, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 8842, u'tag_id': 1169, u'entity_type': u'post'}, {u'quote': u'Of course every rule has exception but the united community can overcome it.\nEvery citizen has moral responsibilities and he is already indebted to the communit', u'entity_id': 797, u'annotation_id': 8843, u'tag_id': 1170, u'entity_type': u'post'}, {u'quote': u"Thank you @Alberto, for commenting and reading.\xa0No, the rats did not take the tea. We injected the bioactive agents (the contents) of the leaves into the rats. Then we observed them with a glucometer. And yes, I think sipping the moringa tea would provide blood regulatory function. Because during digestion, this enters from the gut into the bloodstream, and that's where it serves this function. I have already conducted experiments on this with diabetic humans too (who take the tea), and indeed the moringa tea has very powerful blood regulatory effe", u'entity_id': 11034, u'annotation_id': 8845, u'tag_id': 1171, u'entity_type': u'comment'}, {u'quote': u'My name is Ivan Ezeigbo. I am 20 years old, and currently a sophomore at Minerva Schools at KGI, California, USA. I was inspired by Monica Marcu\u2019s book, The Miracle Tree, to research with a team back in Nigeria on the blood regulatory power of the contents of the leaves of a very medicinal plant. It is a herbal plant that has just drawn a lot of attention in its potential to cure over three hundred ailments. This is the Moringa Oleifera. We experimented on Wistar albino rats. The idea was to inject alloxan intraperitoneally to all groups of Wistar albino rats with healthy working pancreas (alloxan increases blood sugar level, thus inducing hyperglycaemia or making them \u201cpseudo-diabetic\u201d). The bioactive agents of moringa leaves were extracted with ethanol and water, and two groups of the rats were treated each with these contents. An additional group was treated with synthetic insulin (insulin is a natural blood regulatory hormone that brings down blood sugar level), and all three groups were observed. We discovered that the group of Wistar albino rats treated with the bioactive agents of the moringa leaves extracted with water had a SIGNIFICANTLY SIMILAR blood sugar level as those treated with synthetic insulin, and less significant with those treated with ethanol. This unearthened two truths. First, moringa has powerful blood regulatory effects, almost equivalent to the natural insulin. Secondly, water is a better extraction agent than ethanol, unlike the case for many other plant leaves. Aside its blood regulatory power, moringa also cures diarrhea, and many other bacterial and fungal infections. It is also a healthy store for numerous nutrients, vitamins and amino acids. It also thrives very well in these tropical regions of Africa, especially the Southern Nigeria. Armed with this knowledge, I took up the entrepreneurial project of making moringa teas using tea bags because this would not only help a lot of poor people in Nigeria, and Africa in general, who cannot afford or obtain quality health care, but would be a cheap and accessible way of maintaining a healthy lifestyle. Furthermore, since water is a good extraction agent for moringa, moringa teas would provide consumers the maximal health benefits. Even though, I have not had the necessary funding and have been self-funding this project, my motivation to help people live longer and healthier has kept this dream going, and I have not tired out in bringing this to fruition. I am still conducting researches and experiments on my tea, and I have just purchased about two plots of land for moringa farming. I would still need to set up an industry where these teas will be processed.', u'entity_id': 725, u'annotation_id': 8844, u'tag_id': 1171, u'entity_type': u'post'}, {u'quote': u'Well there are literature in abundance. I once worked with Ruth\xa0https://www.kcl.ac.uk/prospectus/staff/index/id/779/alpha//header_search/+/from/searchall\xa0\nAnd have some vague memories about why the thoratic region may be better\xa0\nhttp://biomch-l.isbweb.org/archive/index.php/t-7395.html\nAlso the latest siamoc 2016 conference had some interesting posters on algorithms and field data for fall detection apps that could be of inspiration.\nThe project idea looks good and it could develop into a great alternative to actigraph? @francesco Zava why dont you harvest internal experiences from the magic group?', u'entity_id': 20226, u'annotation_id': 8847, u'tag_id': 1172, u'entity_type': u'comment'}, {u'quote': u"I can see how calibrating\xa0the accelerometer 's sensitivity would be\xa0a problem. If the purpose is to detect when the wearer falls, would it maybe be better to position it near the centre of mass, rather than on a limb? I am sure you have already thought about it, I am just curious", u'entity_id': 7159, u'annotation_id': 8846, u'tag_id': 1172, u'entity_type': u'comment'}, {u'quote': u'for example how to motivate people @Natalia_Skoczylas it could go in that direction', u'entity_id': 27799, u'annotation_id': 12939, u'tag_id': 1175, u'entity_type': u'comment'}, {u'quote': u"Hello\xa0@IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real\xa0strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which\xa0you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.\xa0\nI wish you all the best in your efforts.", u'entity_id': 8154, u'annotation_id': 8859, u'tag_id': 1175, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 669, u'annotation_id': 8858, u'tag_id': 1175, u'entity_type': u'post'}, {u'quote': u'I responsed\xa0to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation\xa0of a person with the\xa0actual\xa0person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are\xa0nostalgia\xa0rather than\xa0replication, which is probably why concept behind the BM episode was so arresting - it sought to\xa0replace\xa0the dead rather than\xa0remember\xa0him.\xa0\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentdigital afterlife\n  \n    \n    Edit\n    Delete\n  \nNo Commentmemorials\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 22330, u'annotation_id': 12940, u'tag_id': 2129, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 24446, u'annotation_id': 8863, u'tag_id': 2129, u'entity_type': u'comment'}, {u'quote': u'Thanks for this. I suffered a loss many years ago and couldn\'t understand the reaction of the people around me. It was if they allowed me a month or two to "get over it" and then I was expected to move on. Some good friends couldn\'t bring themselves to mention the dead person\'s name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone\'s relief it seemed. I remember crying in front of my brother a few months later and he didn\'t know how to cope. But he hadn\'t been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.', u'entity_id': 24145, u'annotation_id': 8862, u'tag_id': 2129, u'entity_type': u'comment'}, {u'quote': u'As an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces.', u'entity_id': 548, u'annotation_id': 8861, u'tag_id': 2129, u'entity_type': u'post'}, {u'quote': u'I am definitely not young anymore, and I guess I am still moving within the paradigm of "mourn, then move on". Actually, my understanding is that you mourn exactly to\xa0make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.', u'entity_id': 20691, u'annotation_id': 8860, u'tag_id': 2129, u'entity_type': u'comment'}, {u'quote': u'Read what other Edgeryders are saying -\xa0Andrei\u2019s At the edges of conflict and mixed identity\xa0makes a strong point on what it\u2019s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: "hate speech on both sides [of Transnistria] is still louder than the voices of peace"\n\nGood for you:\xa0If you\u2019re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you\u2019re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother. \xa0\n\nGood for everyone:\xa0Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.', u'entity_id': 867, u'annotation_id': 8866, u'tag_id': 1178, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 8865, u'tag_id': 1178, u'entity_type': u'post'}, {u'quote': u'For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).', u'entity_id': 6315, u'annotation_id': 8869, u'tag_id': 1179, u'entity_type': u'post'}, {u'quote': u'. In order to allow everybody to have the opportunity to express himself or herself, we don\u2019t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.', u'entity_id': 828, u'annotation_id': 8868, u'tag_id': 1179, u'entity_type': u'post'}, {u'quote': u'My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific "type" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as "album art" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement "xyz"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.', u'entity_id': 13504, u'annotation_id': 8867, u'tag_id': 1179, u'entity_type': u'comment'}, {u'quote': u'the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation.', u'entity_id': 16967, u'annotation_id': 8870, u'tag_id': 1180, u'entity_type': u'comment'}, {u'quote': u'motor impairment due to e.g. multiple sclerosis (MS),', u'entity_id': 720, u'annotation_id': 8871, u'tag_id': 1181, u'entity_type': u'post'}, {u'quote': u'House concerts: The music industry has been through huge disruption since the 1990s, not least as a result of the rise of filesharing. The solo bass player\xa0Steve Lawson\xa0is an example of an independent musician who has spent his career developing new models for making a living and documenting the realities of this on his blog. He sells\xa0downloads of his albums\xa0on a pay-what-you-want basis and makes \u2018house concert\u2019 tours on which he plays in the front rooms of fans, many of whom have first met him online. Reading his accounts of this, two things are clear: first, that these models, drawing on the strengths of networked technologies, allow for\xa0a far more meaningful relationship\xa0with his audience than was possible in the music industry of the pre-Napster era; and, second, that house concerts also\xa0make touring economically viable\xa0for independent musicians in a way that was harder when playing traditional venues. Are there other areas in which socially-embedded grassroots economies can thrive where high-overhead conventional economies struggle? (For another take on the potential of low-overhead economic models, see Kevin Carson\u2019s\xa0The Homebrew Industrial Revolution.)', u'entity_id': 493, u'annotation_id': 8872, u'tag_id': 1182, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11777, u'annotation_id': 8874, u'tag_id': 1183, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 838, u'annotation_id': 8873, u'tag_id': 1183, u'entity_type': u'post'}, {u'quote': u'"(Mutual) aftercare" is an interesting\xa0word I will remember, thank you for introducing it.', u'entity_id': 12425, u'annotation_id': 8876, u'tag_id': 1184, u'entity_type': u'comment'}, {u'quote': u'But\xa0just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group\u2019s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as \u201ccollective effervescence\u201d. This is \u2018aftercare\u2019, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of \u2018mutual aftercare\u2019. Young people seem to be doing similar things in digital spaces, and I wanted to find out how.', u'entity_id': 548, u'annotation_id': 8875, u'tag_id': 1184, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 8877, u'tag_id': 1185, u'entity_type': u'post'}, {u'quote': u'Conversations over the first month have helped to refine the theme from how I\u2019d originally outlined it. This now focuses in more on insights from citizen-led responses to illuminate the enabling factors\xa0that support our natural impulses as human beings to take care of ourselves and one another. These insights will shape how we understand the kind of conditions that grow and sustain grassroots\xa0care initiatives. They will help to define the \u2018microclimates\u2019 that animate or inhibit this kind of self organised activity. My intention is that this will start to inform how we understand the role of policy in the\xa0more disbursed ecology of care called for in response to\xa0growing health needs.', u'entity_id': 6462, u'annotation_id': 8879, u'tag_id': 1187, u'entity_type': u'post'}, {u'quote': u"y @Damiano,\xa0\nI like your questions and experiences with fairbnb. I've also been thinking about this topic and share some ideas and perspectives on\xa0http://creatingnewrealities.co/creating-new-realities/.\xa0\nMy perspective is that there seem to be natural relationships to property and things, even if they are temporal. So I'd like to introduce this element of relationship into the equation for commons. I'm also interested in exploring this topic further and create a software/ community/ commoncreation tool to support the natural relation to our creations and possesions.\xa0\n\nAnother aspect that relates to this is the topic of access of ownership. Which is another way of relating. I'd like to experiment with this in the forms of networks and platforms. Curious how you feel!", u'entity_id': 19865, u'annotation_id': 8878, u'tag_id': 1187, u'entity_type': u'comment'}, {u'quote': u'In 2010 Pakistan was subjected to overwhelming floods which wreaked havoc in the country. More than 20 million people and over 650,000 houses were at the receiving end of this destruction as per Pakistan\u2019s National Disaster Management Authority (NDMA) report. The province of Punjab was greatly affected, the district of Layyah, in Southern Punjabin particular. Rivers of this region overflowed due to the enormous downpour and 15 union councils (UCs) of Layyah were devastated.\xa0\nIn order to reduce the suffering of people from diseases and hunger, a program was developed to\xa0promote agricultural and helath development in the region and also make stratigies to overcome in future too, Relief International (RI) carried out a thorough assessment in this region. Following the assessment, RI has embarked on a project titled \u2018Rapid Livelihoods Rebuilding via Agriculture & Health\xa0based Livelihood initiatives\u2019 (RL-RALI), in collaboration with the British Asian Trust (BAT) for the rebuilding of agriculture based livelihoods in District Layyah of Punjab, Pakistan. The main goal of this project was to\xa0reconstruct\xa0livelihoods as well as health care and encouraging positive economic development in regard to the population of Layyah district affected most by\xa0flooding.\nOBJECTIVES\xa0\n\nImprovement of livelihood through sustainable agricultural \xa0practices via kitchen gardens and establishment of fodder plots in District Layyah, Punjab, Pakistan.\n\nTo establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.\n \nCapacity building\xa0through\xa0provision of trainings and inputs for sustainable development of the flood effected people.\nTo establish local governance through local\xa0economic development\xa0and implementation of project in partnership with local government stakeholders and village-based institutions.\n\nProject implementaion and stratigies\n\n\xa0\xa0Recruitment of staff\n\xa0\xa0Selection of target area\n\xa0 Baseline survey\n\xa0 Orientation & coordination meeting with stakeholders\n\xa0 Formation of community based organizations (CBOs)\n\xa0 Capacity building of CBOs\n\xa0 \xa0Beneficiaries\u2019 identification with the help of CBOs\n\xa0 \xa0Demo plots establishment\n\xa0 \xa0Technical skill enhancement of beneficiaries in kitchen gardening and fodder\n\xa0 \xa0 Agricultural inputs\u2019 distribution\n\xa0 \xa0 Health services and provision of medicines\xa0\n\xa0 \xa0 Evaluation of project\n\xa0 \xa0 Continuous follow up.\n\xa0 \xa0 Continuous monitoring of project\n\nProject Targets\n\n40 CBOs\n40 Demo plots\n10 Rural helath centers\xa0\n20 persons were trained in emergencies handling and care\n10 First aid voulnteers were trained on each localities\xa0\n1400 Persons trained (700 beneficiaries trained in kitchen gardening (70% females) & 700 beneficiaries trained in fodder/vegetable plots)\nDistribution of 700 seeds and 700 tool-kits\xa0\n\nProgress Summary\xa0\nThe main goal of this project is/was the reconstruction of livelihoods and encouraging positive economic development in regard to the population of Layyah district affected most by the flooding. Its a good experience to work with community through its local plate form of Community based organizations.We got a positive response in this sense that all community based plate form established their rural health centers/demo plots and mobilized the community for this income generation activity of kitchen gardening. This income generation activity was not only adopted by CBOs but also adopted by other communities and all the voulteers of CBOs are working with the RI team as volunteer and own the work with full participation.\nAlthough we have started this project in July 2012 with limited team but we have achieved majority targets of project in the short period of time that\xa0\xa0not only show the better planning of project but showed the excellent participation of CBOs and community also.\nCntribution is needed now more than ever to ensure livelihood of the farmers with\xa0 Program continues to serve those in most need. ( Farmers expections)', u'entity_id': 855, u'annotation_id': 8883, u'tag_id': 1188, u'entity_type': u'post'}, {u'quote': u'Dear\xa0Michel, nice to see your article, its very interesting, here some preventive measures are given below for safe exit and i am sure you will definitely agree with that ....\nDuring a Cyclone:\nIf a cyclone is approaching and an official evacuation order has not been issued, you may decide to shelter in your home until the cyclone has passed through.\xa0\n\nIf you decide to shelter at home:\n\nTurn off all electricity, gas and water and unplug all appliances\nKeep your Emergency Kit close at hand\nBring your family into the strongest part of the house\nKeep listening to the radio for cyclone updates and remain indoors until advised\nIf the building begins to break up, immediately seek shelter under a strong table or bench or under\xa0\n a heavy mattress\nBEWARE THE CALM EYE OF THE CYCLONE.\xa0\n Some people venture outdoors during the eye of the cyclone, mistakenly believing that the cyclone has passed. Stay inside until you have received official advice that it is safe to go outside.\n\n\nIf you must evacuate:\nIf an official evacuation order is issued then you and your family must leave your home immediately and seek shelter with friends or family who are further inland or on higher ground.\n\nTurn off all electricity, gas and water, unplug all appliances and lock your doors\nEnsure all family members are wearing strong shoes and suitable clothing\nTake your Emergency Kit and your Evacuation Kit and commence your Evacuation Plan\nIf you are visiting or holidaying in Queensland and do not have family or friends to shelter with, contact your accommodation manager immediately to identify options for evacuation.\n\n\nAfter a Cyclone:\nThe time immediately after a cyclone is often just as dangerous as the initial event itself.\xa0\nMany injuries and deaths have occurred as a result of people failing to take proper precautions while exploring collapsed buildings and sightseeing through devastated streets.\xa0\nOnce you have been advised that the cyclone has passed you must adhere to the following:\n\nListen to your radio and remain indoors until advised\nIf you are told to return to your home, do so using the recommended routes only\nDo not go sightseeing\nCheck on your neighbours if necessary\nDo not use electrical appliances which have been wet until they are checked for safety\nBoil or purify your water until supplies are declared safe\nStay away from damaged powerlines, fallen trees and flood wate', u'entity_id': 27823, u'annotation_id': 8882, u'tag_id': 1188, u'entity_type': u'comment'}, {u'quote': u'It was the Place which really made my camp experience. With scarce Internet and mobile signal, vague appearances of machines, we found ourselves in a nature park with a history, at a two-hour train ride en route from Berlin to Hamburg', u'entity_id': 36387, u'annotation_id': 11698, u'tag_id': 1189, u'entity_type': u'post'}, {u'quote': u'Central in our philosophy is that educational activities must take place within the natural environment and the whole procedure must be supported through workshops where pupils have the opportunity to discover and connect with new information. Our educational approach encourages the development of capacities through observation, flexibility, adaptability, evaluation, goal setting and self-confidence in order to create their own path of life.', u'entity_id': 761, u'annotation_id': 8885, u'tag_id': 1189, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 8884, u'tag_id': 1189, u'entity_type': u'post'}, {u'quote': u'Has been active on the platform. He\u2019s looking specifically at legal frameworks that open new ways to create assets and manage them. A government is an agreement, a company is an agreement. Instruments (eg. shares, debt, derivatives). Nuance between rules of the game and the ball. If you\u2019ve got resources, why do you need money? What sort of agreement or accounting or means of keeping score to do what we need to do. Has been conducting an international review and a historical review. What was here before banks? Commons? No, made proprietary. How has it been enclosed? 75% of money in existence is based on land. Came about through banks lending money for mortgages. Nobody really knows how the system works. How can we use complementary means to get done what we need to do with as little need for the system as possible, bootstrapping.', u'entity_id': 38786, u'annotation_id': 11896, u'tag_id': 1190, u'entity_type': u'post'}, {u'quote': u'We realize that there needs to be support for people needing to navigate these without the fear of accruing a huge amount debt, alongside the emphasis of practices that will ultimately lessen dependence on them. The spaces dedicated to holistic medicine or alternative care are largely inaccessible to large portions of the population because they exist for those who can afford them.', u'entity_id': 5886, u'annotation_id': 8891, u'tag_id': 1190, u'entity_type': u'post'}, {u'quote': u'Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.', u'entity_id': 5886, u'annotation_id': 8890, u'tag_id': 1190, u'entity_type': u'post'}, {u'quote': u'While there are significant problems with the city\u2019s public health infrastructure, they do provide much of the emergency and chronic care here. We realize that there needs to be support for people needing to navigate these without the fear of accruing a huge amount debt, alongside the emphasis of practices that will ultimately lessen dependence on them.', u'entity_id': 5886, u'annotation_id': 8889, u'tag_id': 1190, u'entity_type': u'post'}, {u'quote': u"I work at one of the public hospitals in the city and regularly help people navigate that system. \xa0But at the end of the day, we don't believe these systems have the answer we are looking for, similar to what @Alberto was talking about in regards to the Amish.", u'entity_id': 29958, u'annotation_id': 8888, u'tag_id': 1190, u'entity_type': u'comment'}, {u'quote': u'balance the desire for a new world with the recognition of the reality of the world we live in', u'entity_id': 29958, u'annotation_id': 8887, u'tag_id': 1190, u'entity_type': u'comment'}, {u'quote': u'avigate the overwhelming health infrastructure that exists,', u'entity_id': 521, u'annotation_id': 8886, u'tag_id': 1190, u'entity_type': u'post'}, {u'quote': u'Regan', u'entity_id': 6432, u'annotation_id': 8892, u'tag_id': 1191, u'entity_type': u'post'}, {u'quote': u'I am hoping one of you can help connect Rune and his team to practitioners and patients interested to volunteer to explore how\xa0assistive technology can move forward and into use?\xa0@Rossana_Torri, @Franca, @Francesco_Maria_ZAVA, @Alberto_Simonetti ?', u'entity_id': 28732, u'annotation_id': 12941, u'tag_id': 2130, u'entity_type': u'comment'}, {u'quote': u'There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication.\xa0The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa\u2019s monastery.', u'entity_id': 734, u'annotation_id': 8897, u'tag_id': 2130, u'entity_type': u'post'}, {u'quote': u"@Noemi, @Alberto - I\xa0had a short conversation with @Rune and @Alexander Shumsky\xa0yesterday. Besides discussing OPENandchange, I was also asked to try and help to find physiotherapists and patients who'd like to volunteer their time to work on their research. Do you know of anyone in the community who could be of help here? Or a good way to connect? They really want to have people from Milano and around, in order to be able to work hands on and regularly with them.", u'entity_id': 27806, u'annotation_id': 8896, u'tag_id': 2130, u'entity_type': u'comment'}, {u'quote': u'i wonder if we could approach an organisation like Wellcome Trust as a humanities/health cross over project? What do you think @Bridget_McKenzie? Would this be fundable if we polished up the process and deliverable ideas?', u'entity_id': 13498, u'annotation_id': 12942, u'tag_id': 1194, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 8906, u'tag_id': 1194, u'entity_type': u'post'}, {u'quote': u"Lotfi: Nous \xe9tions trois entit\xe9s, je suis avec Selvi, nous avons eu une maison de repos, Xander travaille avec des enfants autiste, Alkasem, il esp\xe8re qu'il pourrait faire son m\xe9tier de m\xe9decin. On a parl\xe9 d'interg\xe9n\xe9rationnel, comment cr\xe9er des mini soci\xe9t\xe9 ou il y a des \xe9change. Au del\xe0 d'un certain \xe2ge: il y a pas de support. Alkasem a fait la parall\xe8le de comment le syst\xe8me de soin ce passe en moyen orient, une culture musulman de l'entraide. On impose de donner de l'argent au pauvre. Tout le monde vie ici dans sa bulle, il n\u2019y a pas de transversalit\xe9.", u'entity_id': 541, u'annotation_id': 8905, u'tag_id': 1194, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 727, u'annotation_id': 8904, u'tag_id': 1194, u'entity_type': u'post'}, {u'quote': u"Hi @Aravella, \xa0Alternative school is never been taken before. \xa0The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again. \xa0Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime. \xa0Communal Library is rare, there are old books since 70's to 90's sometime \xa0no book but lot of dust and ruins.", u'entity_id': 11993, u'annotation_id': 8903, u'tag_id': 1194, u'entity_type': u'comment'}, {u'quote': u"It's happened that teachers don't get paid for three months, become lazy and don't teach classes. Sometime parents and someone in charge on school find a solution, telling parents to give some amount of money or telling his child to bring some rice for the canteen. In small villages school is far, college and high school is even farther, University is more in the province.", u'entity_id': 746, u'annotation_id': 8902, u'tag_id': 1194, u'entity_type': u'post'}, {u'quote': u'Another key point in artists\u2019 lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.', u'entity_id': 32092, u'annotation_id': 8901, u'tag_id': 1194, u'entity_type': u'comment'}, {u'quote': u'battle to live paycheck to paycheck is very real here in the city, especially for us as a collective', u'entity_id': 29958, u'annotation_id': 8900, u'tag_id': 1194, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 8899, u'tag_id': 1194, u'entity_type': u'post'}, {u'quote': u'I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you\u2019d like to give me a tip, share an idea, help me prepare the tour - leave a comment.', u'entity_id': 740, u'annotation_id': 8898, u'tag_id': 1194, u'entity_type': u'post'}, {u'quote': u"Now, at the point when she is starting to struggle with self care (and here i definitely agree with @johncoate 's view that there is a stubborness and irrational sense of personal independence in their generation) more of the balance of looking after her falls on her kids, whose lives have been so different from hers.", u'entity_id': 27819, u'annotation_id': 8917, u'tag_id': 1195, u'entity_type': u'comment'}, {u'quote': u"Interesting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is.\xa0The impossibility\xa0seems to be\xa0in our inability to provide deeper care when people fall through the cracks -\xa0if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her/himself. \xa0I see people coping at most, because there is no real\xa0choice and assessment of the situation outside constraints.", u'entity_id': 21658, u'annotation_id': 8916, u'tag_id': 1195, u'entity_type': u'comment'}, {u'quote': u'Most\xa0projects for refugees\xa0are designed to specifically help the arriving families, children and the single travelling women; but the majority of refugees is barely taken care of in the same\xa0manner: the young men.\xa0It is an illogical equation: The young male refugees are often regarded as healthy and fit,\xa0able to work and therefore are not treated as a priority in terms of care. However; of what\xa0use could these benefits be if there is nothing to do? In Germany, refugees are not allowed\xa0to pick proper work for the first three months of their stay. After that period, a working\xa0permit is needed to apply for a job. The permit, however, is only granted if the person is no\xa0longer living in a refugee camp. Needless to say, the said three months often pass without\xa0anything really happening and three months slowly turn into six months and into a year\xa0- during which there is nothing to do.', u'entity_id': 703, u'annotation_id': 8915, u'tag_id': 1195, u'entity_type': u'post'}, {u'quote': u'You find yourself under the same strain as the refugees. You get emotionally attached to their quest. You want them to succeed at making it across the Channel. But when they leave the camp to try you feel a gut-wrenching fear for them. You\u2019ve heard too many bad stories \u2013 about the armed police; about the fascist skinheads that patrol around the ferry ports; and refrigerated lorries. Whilst I was there I met two people I later found out fell under the wheels of a moving lorry, or became trapped in airless lorry containers; suffocating to death.', u'entity_id': 536, u'annotation_id': 8914, u'tag_id': 1195, u'entity_type': u'post'}, {u'quote': u'Interesting how being a\xa0caregiver comes not just from sense of purpose or attachment, but a sense of duty.', u'entity_id': 9328, u'annotation_id': 8913, u'tag_id': 1195, u'entity_type': u'comment'}, {u'quote': u'And apart from that my main insight is that care is always interactional, its not a one way street. The system of capitalism is making it a one way street because there s wlays money in and something out. It\u2019s not evolutionary.\u201d', u'entity_id': 494, u'annotation_id': 8912, u'tag_id': 1195, u'entity_type': u'post'}, {u'quote': u'\u201cWe started off by talking about situations in our lives where we have given care, or seen other people receiving care. Who are those people who have taken on traditional care of caregiving? We quickly started talking about feminist issues and women being caregivers through history. We also talked about the rewards, how giving care is valued, if valued at all or you get financial remuneration\u2026\u201d', u'entity_id': 494, u'annotation_id': 8911, u'tag_id': 1195, u'entity_type': u'post'}, {u'quote': u'\u201cWe were discussing the questions on the wall- what care means on fundamental level to us. Under which conditions care is being granted in a community and what that means for us. When discussing integration of people into a group, the separation you make in the beginning affects the integration project...You say there is an external person who should adapt to the community itself, instead of thinking about creating something new from scratch out of the welcoming community and new individials. Especially when you talk about care...you always do the labelling that there is someone who needs help, and I am one to provide help. Maybe getting rid of these labels is important.', u'entity_id': 494, u'annotation_id': 8910, u'tag_id': 1195, u'entity_type': u'post'}, {u'quote': u"Welcome, @Erika_Lazzarino , and many thanks for the story. This idea of caring for a neighborhood, rather than a person,\xa0was what impressed me when we met in Milano last month.\xa0\n\nThis story, by the way, might be very interesting for @Khatuna , @Max_Perry ,\xa0@Hasmik and @gazbee_sorour . Revitalizing a public space, protecting it from economic pressure by building sustainability... seems really great. Also, I'd like @Rossana_Torri 's point of view of the process as seen from the City Hall.\n\nI am also intrigued by the ambiguous nature of success in Lorenteggio. The swap markets, you say, were popular, and brought to ML Milanese from outside the neighborhood. This was seen as a threat by the locals. So, it seems, there is no way to win! If people don't come, the neighborhood is isolated, economically fragile and ultimately unable to resist gentrification. If they do come, the locals do not like it and push back. Also, this creates tensions among the locals: Luca told me that the shopkeepers were happy to see new people (new customers! yay!), but the local people who are not shopkeepers were upset.\xa0\n\nSo here is a big question: when caring for a neighborhood, do you think that at some point you'll have to take sides?", u'entity_id': 8881, u'annotation_id': 12943, u'tag_id': 2132, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 5564, u'annotation_id': 8919, u'tag_id': 2132, u'entity_type': u'post'}, {u'quote': u'My name is Erika. With Luca, Jacopo and Alice we started\xa0Dynamoscopio\xa0("those who observe change"). We are a strange mix of designers, researchers, and practitioners of urban transformation. We are anthropologists, architects, economists.\nIn 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty\xa0Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue.\nThe neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in.\nFirst we investigated the area, and put our findings into a documentary film (trailer). As we did so, we fell in love with the local market,\xa0Mercato Lorenteggio\xa0(henceforth ML). This market had a problem: in 2005 a large supermarket had moved into the area. Its competition was driving many local shops out of business \u2013 including several of those in ML. It was clear that the market was on its way out.\nBy then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments.\nWe tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation.\nSo we did several things.\n\n\nWith the shopkeepers, we redefined ML\'s unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People\'s Designation of Origin). This means local products \u2013 Milano is a farming city, with many farms to the immediate south of the city. It also mean "new local" products, for example we sell\xa0teff\xa0used in Eritrean and Ethiopian cuisine.\n \n\nWe made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called "Fai la spesa per la tua scuola" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating.\n \n\nWe mobilized the community on restoring the fa\xe7ade of the ML building. A Milan-based company donated the materials; the local people contributed manpower. Physical work on the space creates ownership and mobilization. Also, it was a great party (timelapse video)!\n \n\nWe pushed the mixed use of ML as a place for culture and socializing as well as commerce. For example, we organize courses of Arabic languages (requested by many migrant families), knitting events, etc. The market has wide corridors, and can host up to 1,000 people.\n \n\nWe moved in ourselves. Dynamoscopio runs a tiny cultural space (20 square meters) inside ML. We offer wi-fi too.\n \n\nIn general, we are trying to reinvent the physical space of ML and the kind of local commerce that it offers.\nWho pays for this? We started out with grants. Milan is home to several charitable foundations, and some of them focus on the poorer neighborhoods. With time, we are moving towards a more sustainable mix of revenue streams. Even the shopkeepers, now, are chipping in: this is great, because it a sign of increased sustainability. Also, the work we do in Lorenteggio is good PR, and it helps Dynamoscopio get clients.\nWe think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. "Taking care" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community.\nWe are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too.\nConsidering, our work with ML is going rather well. In 2012 it was on its way out, with several shops closed: in 2016 all stalls are in use, and the market is thriving. The space has become more beautiful and welcoming.\nStill, there are many things we would like to improve. For example, last year we organized two "swap markets", and they failed badly. Both events were popular, with a lot of people in attendance. But these were people from outside the neighborhood, many of them hipsters. This created tension, because the locals see them as harbingers that they will be priced out of the neighborhood. Another pain point is that we are unable to monitor our impact. Shopkeepers are reluctant to disclose how much money they are making. We do not even have a system to count the number of people present in the market. We would love to have some kind of tool, but somehow this sort of work always gets deprioritized, there is so much to do.\nAlso, we are not sure how much longer we can afford to stay engaged with ML. But we worry. What happens when we stop pushing? Another example: for a while, a guy named Manuel ran a vegetable garden outside ML. People loved it. But when Manuel withdrew, the whole thing dried out. These dynamics look great, but they are not always sustainable.\nDo you know of any similar experience? We would love to compare notes.', u'entity_id': 804, u'annotation_id': 8918, u'tag_id': 2132, u'entity_type': u'post'}, {u'quote': u'The aforementioned pushed the Politecnico University to challange itself asking \u201chow can our student transitional community and residents develop positive interactions and give new life to the district?\u201d.\n\nThis is what the course \u2013 PSSD 2017 Networks of Care Collaborative encounters in/around the Bovisa campus \u2013 is about.\n\nEzio Manzini and Liat Rogel, with Susanna De Besi wanted this to be the focus of their students\u2019 work for this year. And they suggested the students to interact with the edgeryders community as their works progress.\n\nToday introduction ended with the following questions to students:\n\nReferring to your everyday interactions with Bovisa, when are you in need for care? \xa0And when are you willing to provide care to somebody else?\n\n@Ezio_Manzini @Social_Open_Campus @Rossana_Torri @Liat @Social_Open_Campus', u'entity_id': 832, u'annotation_id': 12944, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u'Interesting way of phrasing it, "social hiatus". I am wondering if you have your own memory of feeling strange or unease, or lonely in a situation. How long have you been living in the neighborhood?\nFor me and my colleagues in Edgeryders, being new to a city like Brussels (we live here\xa0but we are all expatriates)\xa0definitely risked feeling loney or unfit. It made us reconsider our lifestyle habits and become more social in our own living environment, through trying\xa0co-housing. The reason it works is that we are both designers and subjects of the experiment, so we only designed what we are willing to do. Have a look at the story we posted\xa0and feel free to comment there or here..\xa0do you socialize or create bonds with people in Bovisa outside your student circle or friends? if yes, great. if no, what are the constraints at the personal level?', u'entity_id': 7784, u'annotation_id': 8932, u'tag_id': 2133, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 834, u'annotation_id': 8931, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 8930, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7855, u'annotation_id': 8929, u'tag_id': 2133, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 575, u'annotation_id': 8928, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 833, u'annotation_id': 8927, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14770, u'annotation_id': 8926, u'tag_id': 2133, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 8925, u'tag_id': 2133, u'entity_type': u'comment'}, {u'quote': u"\u201cFrom streetparking to neighborhood parking\u201d: if we want to create free spaces in streets we have to find solutions for the parked cars in the street. When experimenting with Living street the initiators have to find appropriate places for their cars to park. Not just 'around the corner'. We look for under-used parking spaces at shops, companies, railwaystations, ... This can be in the neighborhood or even more remote at 'long distance parkings'. Each time citizens (on a volunteering basis) test this new way of parking and are supported by our network through (e)-bikes, bus/tramtickets, ... The insights and experience we gain here are used by the local city administration.", u'entity_id': 33778, u'annotation_id': 8924, u'tag_id': 2133, u'entity_type': u'comment'}, {u'quote': u'\u201cLocal authorities are no longer perceived as the only party expected to solve complex issues in cities\u201d (source)\nThis post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens.\nLiving Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people\u2019s relationship with city officials.', u'entity_id': 33746, u'annotation_id': 8923, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u'To discuss questions arising from this kind of community engagement, Elizabeth Calderon-L\xfcning, Marco Clausen, and Asa Sonjasdotter initiated the Neighbourhood Academy in 2015:a self-organized open platform for urban and rural knowledge sharing, cultural practice and activism. This bottom-up academy combines different knowledge- and experienced-based formats: non-standardized knowledge, hands-on know-how, sensuous narratives and research methods. People, organizations, and projects from different neighborhoods come together. Participants can come from Berlin-Kreuzberg or the region around Berlin just as likely as from Detroit or rural areas in Greece to find common ground for learning and teaching.', u'entity_id': 507, u'annotation_id': 8922, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u"I like this idea of neighborhood driven education. In my home town we are also planning a project in this direction, so I will follow these stories\xa0with interest :).\xa0\nThe correlation between how you teach and what a child learns and ultimately\xa0which kind of person\xa0it becomes is a hard one. There's so many different opinions on what is the best way of educating and each seems to have its merits. In practise there's already quite some alternatives - at least in Belgium - like Steiner and Freinet schools. My experience with those schools is limited and I have not seen miracles. How does\xa0your philospophy\xa0relate to the existing alternatives?\nLike @Noemi says, it's a hard case for radical changes. That's not necessarily a bad thing. There needs to be room for experiment, but education is important enough that we should\xa0prevent major failures, even for a small group. The norm will shift slowly as educators themselves learn. I think it's that learning aspect that makes the difference. I hear the saddest stories while working with children. Usually it's\xa0educators lacking insight in themselves and their practise, as well as a very static approach to their profession. They are factory workers: follow the protocol, complete the checklist, get good numbers.\nHowever, more and more\xa0teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am\xa0surfing that wave, but STEM has become\xa0a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium\xa0are implementing\xa0smart boards, apps, school fablabs etc.\xa0without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc.\xa0rely on technology to avoid changing their behavior. Ironic, because reality is the opposite.\nWe do new biology education and that is\xa0our trojan horse:\xa0we can hide a new method in the new technological content that we bring. This also means that these changes to the methods\xa0won't be too radical. What we do\xa0is accepted as a technological innovation, but hopefully the changes in method will\xa0add\xa0to the slow collective learning process on different methods.", u'entity_id': 15297, u'annotation_id': 8921, u'tag_id': 2133, u'entity_type': u'comment'}, {u'quote': u"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge.\nEurope's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population.\nThe rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future.\nEducation, learning & the value of teenagers\nTraditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways.\nTeenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant.\n\xabFuture Tools\xbb project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. \xabFuture Tools\xbb is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation.\nProvide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways \xabFuture Tools\xbb will engage people in fostering a society with greater equality, solidarity and sustainability.\n\xabFuture Tools\xbb is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood\u2019s daily activities and funnel the parents\u2019 interest in social promotion for their kids towards a more inclusive society.\nThe abundance of open resources that can be freely accessed through personal learning environments to learn digital skills \u2014such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world\u2014 is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future.\nNeighboring environment\nThe neighborhood as a community comes to relevance in the task of \xabhelping grow adults\xbb. The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities.\nIt is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community.\nIt is sometimes sad hear stating that what is being promoted for innovation in the field of education \u2014on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other\u2014 are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.", u'entity_id': 796, u'annotation_id': 8920, u'tag_id': 2133, u'entity_type': u'post'}, {u'quote': u"I was and I am a part of that. And it strikes me that this kind of neoliberal thinking of \u201eyour life (and your success/failure) is your responsibility\u201c leads us sometimes to very harsh assumptions about ourselves and our peers.\nI can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case).\nAgainst this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does \u201ereal\u201c self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?\xa0\nI think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own.\nHow can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?", u'entity_id': 666, u'annotation_id': 8933, u'tag_id': 1198, u'entity_type': u'post'}, {u'quote': u"Winnie reacted that your own people's trust is a constant, but gaining the network's trust is more difficult.", u'entity_id': 541, u'annotation_id': 8934, u'tag_id': 1199, u'entity_type': u'post'}, {u'quote': u"Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse\xa0effects in biotech\xa0are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The\xa0time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books).\nThis is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories\xa0from the news today:\xa0http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he's right.\nThe obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I've read most of the team is aware of this.\xa0The potential of open medicine is there in the long term however.\xa0It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It's one worth having in my eyes.\nAnyway, how about that Skype call @dfko ? I've messaged the OI account on Twitter, but no reply.", u'entity_id': 27807, u'annotation_id': 8937, u'tag_id': 1201, u'entity_type': u'comment'}, {u'quote': u"I think it's useless to repeat methods from the past. We have to think out of the box and create new ways of reaction. We can use all this survival kit lists just for wring/sift and/or update them. The point is not an endless list that nobody wants to read it but to find ways to train the people through their daily routines. And only a few things should be prepared especially for emergencies.", u'entity_id': 13505, u'annotation_id': 8936, u'tag_id': 1201, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 13130, u'annotation_id': 8963, u'tag_id': 1206, u'entity_type': u'comment'}, {u'quote': u'@Luisa, just a quick thought: maybe Welcome Dinner is more popular with locals than newcomers because of the way the team is configured - mostly locals I\'m guessing? If "newcomers" (generic term because newcomers might have been around for some time now!)\xa0were actually part of the design and the project team they\'d have new insights into how more diverse communities can be engaged. This is exactly what we\'re looking at with OpenCare - novel ways of improving\xa0promising projects out there, even if these new ways are\xa0just insights or if it means borrowing ideas from different projects faring better already.', u'entity_id': 12157, u'annotation_id': 8962, u'tag_id': 1206, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 12739, u'annotation_id': 8961, u'tag_id': 1206, u'entity_type': u'comment'}, {u'quote': u'Actually "newcomers" is the most generic, broad enough and also non-offensive term we came up with for this OpenCare challenge. It turns out that most of us have fit that category at some time in our lives.\xa0I only wanted to point out that projects looking at integration of sorts might need to acknowledge that those who are perceived as newcomers\xa0can already have strong cultural claims to a space because they are already shaping it\xa0e.g. working\xa0migrants, or foreign\xa0students settling to a space.', u'entity_id': 13009, u'annotation_id': 8960, u'tag_id': 1206, u'entity_type': u'comment'}, {u'quote': u'When they do not volunteer with MCCH, volunteers exchange services and small favors through a bank of time : two massages against one hour of English lesson etc.', u'entity_id': 4913, u'annotation_id': 12945, u'tag_id': 2134, u'entity_type': u'post'}, {u'quote': u'The initial response suggests that young people are willing to take a step down in their material expectations, if this is balanced by sufficient security and autonomy to pursue work which they believe matters.', u'entity_id': 493, u'annotation_id': 8940, u'tag_id': 2134, u'entity_type': u'post'}, {u'quote': u'house concerts also\xa0make touring economically viable\xa0for independent musicians in a way that was harder when playing traditional venues.', u'entity_id': 493, u'annotation_id': 8939, u'tag_id': 2134, u'entity_type': u'post'}, {u'quote': u'new models for making a living', u'entity_id': 493, u'annotation_id': 8938, u'tag_id': 2134, u'entity_type': u'post'}, {u'quote': u"To me there's roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what's happening, even when I don't know where I'm going. I'm fully aware of what I'm experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it's also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.", u'entity_id': 846, u'annotation_id': 8957, u'tag_id': 1203, u'entity_type': u'post'}, {u'quote': u'However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO\u2019s are \u2018good\u2019, while they don\u2019t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.', u'entity_id': 37182, u'annotation_id': 11783, u'tag_id': 1207, u'entity_type': u'post'}, {u'quote': u'Pieter: \u201cWe evaluated it with the city administration and wanted to carry on. We needed a legal status for two reasons: first, to be legally covered when things go wrong, and be able to protect ourselves and the project. A second is that we were starting to work with money, we had private sponsors and companies saying they were interested in what we are trying to discover. We organized an NGO, very close to the city organisation, because we wanted to change the system.\u201d\nThe mission of that NGO (The Trojan Lab) was - within the timeframe of 5 years, and importantly, in between 2 elections - organizing as many as possible experiments and gather lessons, see what dynamics all this can start. We\u2019ll stop before the elections to make sure that every political group has the possibility to take the lessons and translate them into the government system.', u'entity_id': 33746, u'annotation_id': 8969, u'tag_id': 1207, u'entity_type': u'post'}, {u'quote': u'Besides public hospitals and private clinics, these structures harbour initiatives ranging from non-profit actions\xa0by international and domestic NGOs or philanthropic organisations (including the church), to volunteer initiatives and informal groups. Over the last years, such initiatives have focused on the distribution of primary need goods (ie. clothes, food, education), based on a strong narrative around the solidarity and exchange economy. In parallel with citizen-led initiatives, many city councils have launched municipal Social\xa0Grocery\xa0stores or Pharmacies. In many cases, local community action is combined with public social structures.', u'entity_id': 736, u'annotation_id': 8968, u'tag_id': 1207, u'entity_type': u'post'}, {u'quote': u'One reads about NGOs becoming institutions and not in a good way.\xa0This is very hard to digest in the real world, since your\xa0mission is supposedly to fix\xa0a problem. Sorry to hear about that unfortunate experience, we will be on the lookout for other options.', u'entity_id': 24948, u'annotation_id': 8966, u'tag_id': 1207, u'entity_type': u'comment'}, {u'quote': u'Each morning at the l\u2019Auberge des Migrants Warehouse between 40-200 volunteers arrive to help with the day\u2019s tasks. It is one of 2 or 3 three aid organisations in the area serving the needs of the camp.', u'entity_id': 536, u'annotation_id': 8965, u'tag_id': 1207, u'entity_type': u'post'}, {u'quote': u'There are some good things in progress.\xa0Recently I met some people from Christian missionary\xa0called ADRA "Adventist Development and Relief Agency" \xa0using techniques to improve farming for those who have land or what to farming it was only a campaign. NGOs like USAID who have been here since 32 years to help Malagasy people to realize goals of development, recover from natural disaster like cyclones, health care like malnutrition, sponsoring on project used to be only for educational like "youth and reproduction", \xa0"Youth against HIV". But it\'s only in the capital or on a regional campaign for few times and not long enough to be remembered by people. They are trying to give free training, help and support for young people in suburban areas but ... sometime with no success . Youth Volunteers like Peacecorps almost every year whose giving free teaching, help and give some supplies like pen and copy book, chalkboard \xa0etc.. if they have something to give.', u'entity_id': 746, u'annotation_id': 8964, u'tag_id': 1207, u'entity_type': u'post'}, {u'quote': u'aid agencies', u'entity_id': 39338, u'annotation_id': 11644, u'tag_id': 1207, u'entity_type': u'comment'}, {u'quote': u'this has been a big issue in the NHS. there is a large intrest in opencare from medical professionals. addressing its internal issues or just giving greater flexibility to the staff would give staff the head space for other projects of intrest.', u'entity_id': 6685, u'annotation_id': 8975, u'tag_id': 1208, u'entity_type': u'comment'}, {u'quote': u"A current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.", u'entity_id': 30187, u'annotation_id': 8974, u'tag_id': 1208, u'entity_type': u'comment'}, {u'quote': u'I may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product:\xa0"Support us, and there will be\xa0more money for health care!". They can do this because\xa0everybody\xa0agrees that funding public health care is a good thing. In this sense, even though it\'s still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it\'s part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.', u'entity_id': 27204, u'annotation_id': 8973, u'tag_id': 1208, u'entity_type': u'comment'}, {u'quote': u"(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)", u'entity_id': 10261, u'annotation_id': 8971, u'tag_id': 1208, u'entity_type': u'comment'}, {u'quote': u": 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?", u'entity_id': 10261, u'annotation_id': 8970, u'tag_id': 1208, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14770, u'annotation_id': 8976, u'tag_id': 1209, u'entity_type': u'comment'}, {u'quote': u'Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.', u'entity_id': 22039, u'annotation_id': 8977, u'tag_id': 1210, u'entity_type': u'comment'}, {u'quote': u'That seems to be another Problem: every camp has different rules, so its almost impossible to find a general context.', u'entity_id': 21499, u'annotation_id': 8980, u'tag_id': 1213, u'entity_type': u'comment'}, {u'quote': u'Pieter: \u201cWe started engaging people with the question \u201cWhat if?\u201d; mapping the ideas and also the interests of people. \u201cHow do I look at my neighborhood?\u201d from the perspective of social security, traffic, safety, more green in the streets,... For each remark we mobilize our network and creativity to support initiators from each street to find solutions. After that process is done, the people come up with a vision for their living street, that will be implemented in practice. Evaluation is an ongoing process, so things can be changed during it.\u201d', u'entity_id': 33746, u'annotation_id': 4499, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'\xabFuture Tools\xbb project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. \xabFuture Tools\xbb is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation.', u'entity_id': 796, u'annotation_id': 4498, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'The issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students.', u'entity_id': 511, u'annotation_id': 4497, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'I can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case).', u'entity_id': 666, u'annotation_id': 4496, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'On one occasion for some reason I lost this faith in the future. This wasn\u2019t any kind of impulsive plan or drunken depression. Instead I gradually began to see the future without me as a part of it. I got rid of all my books, got rid of all my CDs and records. I closed bank accounts, I cancelled mailing lists. I booked an appointment with Free Legal Aid with the intention of creating a will.', u'entity_id': 562, u'annotation_id': 4495, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'ither through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in', u'entity_id': 16456, u'annotation_id': 4494, u'tag_id': 5, u'entity_type': u'comment'}, {u'quote': u'Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for\xa0people working together and sharing space, especially if they are "living on the edge". Change is difficult and every group\xa0liable to conflict. E.C. Whitmont writes in The Symbolic Quest that \u201cThe seeming inevitability of conflict among the archetypal "powers" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.\u201d There\'s a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.', u'entity_id': 553, u'annotation_id': 4493, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.', u'entity_id': 671, u'annotation_id': 4492, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'In the end there is either hope, or hopelessness; Chance or no Chance. Both suffocate you and the refugees. It clouds all your conversations and interactions.', u'entity_id': 536, u'annotation_id': 4491, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'All those things are looking good for a while, but they have no impact on their lifetime. There is no precise political with systematization or screening. There is not enough community who cares especially for young Malagasy. Insecurity, infrastructure and corruption are principal factors which still exist since long time and drag in deep water the majority of those young people. When I was asking them to give their thoughts, they say: " We felt abandoned by the government, they only thinking about how to full they pockets. As we learned from school: "I" is going first and "YOU" is after, that\u2019s how people in government are thinking. Our daily duty is to wake-up, go outside chilling with friends, and go back home at lunch time\u201d.', u'entity_id': 746, u'annotation_id': 4490, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u"Five years into the current crisis, the default future for much of Europe is a world of longer hours and lower wages. Economic regeneration as we have known it could hardly keep up with the social costs of industrial decline, even during periods of sustained growth. That economic collapse can lead into and become entrenched by a collapse of meaning is not just a post-Soviet story, but one that can be traced in many of Europe's former industrial regions, not least the areas of South Yorkshire where I once worked as a journalist.", u'entity_id': 493, u'annotation_id': 4489, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'Directional: What do I get out of bed for in the morning? And where do I see myself in the future?', u'entity_id': 493, u'annotation_id': 4488, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'Four years ago, in\xa0\u2018The Future of Unemployment\u2019, I suggested that it might be helpful to distinguish three types of need which, broadly speaking, we have looked to employment to provide. I want to return to this model as a way of structuring a search for examples of effective action on the level of meaning. Departing slightly from the original terms, I would summarise these types of need as follows:', u'entity_id': 493, u'annotation_id': 4487, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'The figure of the \u2018graduate with no future\u2019,\xa0identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov\u2019s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason\u2019s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.', u'entity_id': 493, u'annotation_id': 4486, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'he default future for much of Europe is a world of longer hours and lower wages', u'entity_id': 493, u'annotation_id': 4482, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'The figure of the \u2018graduate with no future\u2019,\xa0identified by Paul Mason, has the advantage of youth, yet in other ways she resembles Orlov\u2019s successful middle-aged man. People are capable of enduring great hardship, so long as they can find meaning in their situation, but it is hard to find meaning in the hundredth rejection letter. The feeling of having done everything right and still got nowhere leads to a particular desperation. Against this background, the actions of those who might identify with Mason\u2019s description - whether as indignados in the squares of Spain, or as Edgeryders entering the corridors of Strasbourg and Brussels - are not least a search for meaning, for new frameworks in which to make sense of our lives when the promises that framed the labour market for our parents no longer ring true.', u'entity_id': 493, u'annotation_id': 4481, u'tag_id': 5, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 8984, u'tag_id': 1214, u'entity_type': u'post'}, {u'quote': u"I ask because we've gotten involved with local government at times, but we see it as purely strategic, we won't do anything with them that would require some kind of compromise because ultimately we are interested in autonomy from all forms of governance.", u'entity_id': 21004, u'annotation_id': 8983, u'tag_id': 1214, u'entity_type': u'comment'}, {u'quote': u'Active Noise Cancellation Technology', u'entity_id': 776, u'annotation_id': 12946, u'tag_id': 1217, u'entity_type': u'post'}, {u'quote': u'Autistic children have limited behaviours about social connections and they can easily get confused from hearing more than one sound when they are outside. We want to help the children to get out into the world without fear. Usually children get very scared of loud noises and it a ects their behaviour. They nd it very intimidating. We propose to care for them by designing a device that lets them hear their parent\u2019s and other familiar voices, phasing out other sounds like those of tra c, crowd, machines etc.\n\xa0\nWhat are the main aspects of this project?\nThe main aspect of this project is to use technology that is not only advanced but also very much user friendly. The prototype will be able to have speech recognition so that it detects the sounds of certain people and lets them through but not intimidating sounds like those of tra c and machines\n\xa0\nHow to?\nWe can\n-use noise cancelling technology and speech recognition software to design the prototype\n-introducing simple gestures to use and control the headphones\n\xa0\nLinks for reference:\nhttp://oureverydaylife.com/use-headphones-children-autism-12460.html\nhttp://www.got-autism.com/blog/?tag=headphones-for-kids-with-asd\n\xa0\n\xa0\nWhat have been done?\nThere hasn\u2019t been anything speci c that has been designed for autistic children that serves the purpose we intend to solve. There have been independent approaches to speech recognition through software and headphones through software.', u'entity_id': 772, u'annotation_id': 8992, u'tag_id': 1217, u'entity_type': u'post'}, {u'quote': u'We want to provide care for people living in neighbour- hoods with lot of noise around them. Noise can a ect physical and mental health of people. Noise pollution in the cities can take a toll on the quality of life of the people. Research has shown that noise pollution can cause problems like heart diseases, stress, lack of sleep and hearing loss to some extent. The average recom- mended noise exposure limit is 55 decibels. However, tra c accounts for 70 decibels and construction machin- ery accounts for about 120 decibels. These are the major generators of sound in the city and well beyond the average exposure limit. We want to provide care to the people living with so much noise around them by using technology.\n\xa0\nWhat are the main aspects of this project?\nThe main aspect of this project is to use technology to provide care for the people so that they have a healthy lifestyle\n\xa0\nHow to?\nWe can\n-use transducers on the walls or windows of the house. -sensors that sense the movement of people in the house, detecting whether to switch the device on\n-LCD screen showing the decibel levels outside\n\xa0\nLinks for reference:\nhttp://www.explainthatstu .com/noisecancellingheadphones.html\nhttp://doctord.dyndns.org/Pubs/POTENT.htm\n\xa0\nWhat have been done?\nwww.silentium.com/blog\nhttp://www.ippinka.com/blog/sono-peace-quiet-home/\nhttps://www.kickstarter.com/projects/wnc/whisper-the-noise-canceler\nhttps://www.indiegogo.com/projects/muzo-personal-zone-creator-w-noise-blocking-tech-sound-sleep#/', u'entity_id': 771, u'annotation_id': 8991, u'tag_id': 1217, u'entity_type': u'post'}, {u'quote': u'Hello @wave , I also was intrigued by this idea, but I don\'t get it. As far as I know, noise cancellation is predicated each one of us having a "personal" source of reverse-phase sound waves: my headphones, for example. They sample ambient noise (the hum of an aircraft\'s or train\'s engine), reverse the sample\'s phase and emit it in my ears. Your idea of emitting at the source is quite novel, at least I have never heard of it. Would love to know more!', u'entity_id': 14059, u'annotation_id': 8990, u'tag_id': 1217, u'entity_type': u'comment'}, {u'quote': u'We are a group of students from Master of Interaction Design at Domus Academy. We are now working on Opencare project in colabration with WeMake FABLab in Milano. We have a lot of ideas we know This idea has some difficulties about reversing technology which is already there (sound cancellat\u0131on). The way we wanted the prototype to work is that if we can use the existing technology of noise cancellation to design something that can be put on the baby in order to reduce their noise. We can further d\u0131scuss how we were proposing to use the noise cancellation technology here, but for now we have kept this project on hold.', u'entity_id': 10661, u'annotation_id': 8989, u'tag_id': 1217, u'entity_type': u'comment'}, {u'quote': u'Hey @wave, fun fact: I was reading about your idea as I was flying and thinking how my next big purchase should be a set of noise cancelling headphones.To be clear: not necessarily because of crying babies Yet I don\u2019t understand how it would work because of the very uneven cries and peak sounds which are hard to counteract. Tell us more.', u'entity_id': 10314, u'annotation_id': 8988, u'tag_id': 1217, u'entity_type': u'comment'}, {u'quote': u'Platform Cooperativism promotes shared ownership among users of the platform in order to create non-extractive alternatives to current platforms.', u'entity_id': 6300, u'annotation_id': 8993, u'tag_id': 1218, u'entity_type': u'post'}, {u'quote': u"During the last six months, I have been attending almost all the event on Platform Cooperativism in Europe.\nEven tough is exciting what is happening, there isn't a model that reached a dimension that can be compared to any dominant platform, and some points are missing from the global discussion.\nPlatform Cooperativism promotes shared ownership among users of the platform in order to create non-extractive alternatives to current platforms.", u'entity_id': 6300, u'annotation_id': 9012, u'tag_id': 1226, u'entity_type': u'post'}, {u'quote': u"I thought I'd write a small update. In September 2016, we have launched a new nonprofit for education called Ekoli. Reasons for putting our educational activities in a new entity were better communication and keeping the biohacking legally seperate (translates into admin & cost advantages).\nIn retrospect, it was also good to assemble a new team around a new common goal. This fresh wind pushed us to where we are now, having reached hundreds of underpriviledged children & school children and poised to grow a lot in the new school year after the summer.\xa0\nDownsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent) \xa0time too thinly. Generally it was a good decision though.", u'entity_id': 24301, u'annotation_id': 9011, u'tag_id': 1226, u'entity_type': u'comment'}, {u'quote': u'the team: another narrative had been seeping through our conversations with the blind volunteers, that we did not consider in advance. Most of the blind people we had talked to, despite agreeing to the obstacles imposed by visual impairment, did not consider that a defining condition and were rather cold to any assistive technology they tested or we described. Instead, narratives of empowerment, education, disintermediation, were flowing through most of their replies, even when our conversations were explicitly biased towards solutions\u201d.', u'entity_id': 577, u'annotation_id': 8998, u'tag_id': 1221, u'entity_type': u'post'}, {u'quote': u"@Rune, I've lived in 8 countries in the past few years, mostly in Europe. I've been to doctors in all of them. And there were no computers to assist the doctors, mostly they had a person to do the written documentation. Which didn't change the fact that even if they had theoretically more time to spend on approaching me as a patient, they would mostly limit their help to examination and writing a prescription. Rarely they bother talking to me and try to figure out the reasons for the problem. It happened a lot with dermatologists, who basically just give you a prescription for some external treatment, very expensive, and ask you to try it out. None of their recommendations ever helped me.", u'entity_id': 12427, u'annotation_id': 8996, u'tag_id': 1221, u'entity_type': u'comment'}, {u'quote': u'digital helps a lot but not enough\xa0as the famous book of sherry turkle descibes (we are together and alone) we need also', u'entity_id': 9138, u'annotation_id': 12947, u'tag_id': 2136, u'entity_type': u'comment'}, {u'quote': u'What we do can be considered an experiment and in many ways, it\u2019s not necessarily about biology. We hope that, in addition to growing a basic biological literacy, we help to build\xa0a shift in attitude. When we watch global developments, it is clear that the biggest problems we face don\u2019t require technological solutions. Even problems that are directly caused by a misuse of technology, like climate change, could be headed towards a solution by changing our attitude, especially when combined with more sustainable bio-based technologies. A change in behaviour is not likely to happen overnight, but if we can build institutions that promote caring, collaboration and trust, we might be on our way.', u'entity_id': 530, u'annotation_id': 9005, u'tag_id': 2136, u'entity_type': u'post'}, {u'quote': u'1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases. \xa0 Beyond the key "theoretical" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.', u'entity_id': 21489, u'annotation_id': 9004, u'tag_id': 2136, u'entity_type': u'comment'}, {u'quote': u"@Rune, I've lived in 8 countries in the past few years, mostly in Europe. I've been to doctors in all of them. And there were no computers to assist the doctors, mostly they had a person to do the written documentation. Which didn't change the fact that even if they had theoretically more time to spend on approaching me as a patient, they would mostly limit their help to examination and writing a prescription. Rarely they bother talking to me and try to figure out the reasons for the problem. It happened a lot with dermatologists, who basically just give you a prescription for some external treatment, very expensive, and ask you to try it out. None of their recommendations ever helped me.", u'entity_id': 12427, u'annotation_id': 9001, u'tag_id': 2136, u'entity_type': u'comment'}, {u'quote': u'I accuse: Technocrats that have made healthcare more \u2018efficient\u2019 by buggy information technology. Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.', u'entity_id': 11945, u'annotation_id': 9000, u'tag_id': 2136, u'entity_type': u'comment'}, {u'quote': u'We conclude on the fact that the creation of digital tools will not alone be the solution, what we need are well thought of spaces that give people the possibility to live at a descent standard without needing to fall in the spiral of a purely private ownership.', u'entity_id': 745, u'annotation_id': 8999, u'tag_id': 2136, u'entity_type': u'post'}, {u'quote': u"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.", u'entity_id': 23874, u'annotation_id': 9006, u'tag_id': 1223, u'entity_type': u'comment'}, {u'quote': u'Those working in the Aid Distribution team have to work in intimate personal spaces. The role requires you to enter into the shelters and tents of refugees to communicate with them. Preferably, this requires a translator, but most communication is through non-verbal, gesture and eye-contact. Even with a total language barrier, the way the refugees welcome you into their personal space is heart warming. The experience is unlike anything I have experienced elsewhere. For many British volunteers this immediate intimacy from strangers can be strange and disorienting. It feels odd to accept food, drink and hospitality from people who have so little already. Yet, rejecting the offer also seems heartless. It is difficult to balance these conflicting emotions. I often struggle to balance my desire to be \u2018efficient\u2019 at the task, with being \u2018friendly\u2019 to the people I\u2019m helping. I could spend a whole day working with only 10-15 people: Eating food with them; making notes about vulnerabilities; listening to the needs of their community and drinking sweet milk chai. Then I remember that there are thousands of people on the camp. If I spend the same amount of time with each group it would take years to finish the simple tasks.', u'entity_id': 536, u'annotation_id': 9013, u'tag_id': 1227, u'entity_type': u'post'}, {u'quote': u"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.\nNon-violence as a way of life, however, I do believe is nearly always good. It's just that open protest might not be the way to go. Instead, it might be being kind to one's oppressors. Or treating them with empathy. Nonviolent Communication is a good set of principles in many settings. But people have to be human. What good is non-violence in face of a pack of hungry wolves or hyenas? And sometimes, people lose their humanity, behaving like animals. It can be very hard to call back people's humanity, but perhaps always worth the effort?", u'entity_id': 19608, u'annotation_id': 9008, u'tag_id': 1224, u'entity_type': u'comment'}, {u'quote': u"even though they are being trampled on a daily basis. According to statistics, 92% of Malagasy lived below the poverty threshold but no one rose up. When social pressure is too much, the point of rupture is not far, and the accumulation of frustration and deprivation often results in bloody explosions. However, this can be avoided. Just put yourself to nonviolent civil resistance! Nowadays, the Malagasy people are tired of going down to the streets to claim their rights as citizens. Why make the strike if it is to have each time the same scenario: Teaser bombs, lost bullets and blood flowing, as was the case in 1972, 2002, or in 2009? Why manifesting because it is the politicians who benefit in the end? Today, people prefer to stay at home and rant about the social network instead of expressing their frustration in public and questioning their leaders. And yet, it is not the subjects of contestation which are wanting. Traffics of all kinds, corruption, bad governance, lack of accountability of elected officials, non-respect of laws, hamper development of the country. It is now essential that the Malagasy rediscover that power belongs to them and that they learn how to fight against injustice, without dilatory maneuvering of the politicians, and without violence. As Martin Luther King Jr pointed out, active nonviolence is not a method for cowards. On the contrary, it is a real resistance. It is the art of using non-violent power to achieve sociopolitical objectives, especially through symbolic protests. This practice was popularized from 1921 by exemplary personalities like Gandhi in India, by Nelson Mandela and Steve Biko in South Africa, or Martin Luther King Jr in his fight against segregation. The Malagasy also experimented with nonviolent civil resistance, for example through publications in satirical journals under colonization, but the practice gradually lost face to the rise of the military and police repression, but Also facing the weariness of the main concerned - the citizens. Contemporary movements such as Wake-up Madagascar are now trying to awaken citizens' consciences and to revive non-violent civil resistance. Short-lived symbolic actions that do not create crowds and are therefore not illegal are regularly organized to denounce the fact of society that make jasper. Expose empty plates to say that the Malagasy are hungry, to walk in the streets of Antananarivo to demand the ratification of a charter on democracy or to make the dead on the place of independence in the city center of the capital to denounce the words which undermine the country are for example, part of the non-violent civil resistance. It is precisely to spread this philosophy on the desire for change through non-violent actions that many projects such as LIANA or Learning Initiative Aiming at Non Violent Action which was initiated by Wake Up Madagascar, Liberty 32 and the WYLD program Women and Youth's League for Democracy with the support of the International Center for Non-Violent Conflict. Since the 70's during the 1st Republic in Madagascar, Malagasy people have been manipulate and influenced by politicians who wants a place on government by force. This article is about about my own personal opinion. You can add a comment, give suggestions or critics", u'entity_id': 813, u'annotation_id': 9007, u'tag_id': 1224, u'entity_type': u'post'}, {u'quote': u"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.\nNon-violence as a way of life, however, I do believe is nearly always good. It's just that open protest might not be the way to go. Instead, it might be being kind to one's oppressors. Or treating them with empathy. Nonviolent Communication is a good set of principles in many settings. But people have to be human. What good is non-violence in face of a pack of hungry wolves or hyenas? And sometimes, people lose their humanity, behaving like animals. It can be very hard to call back people's humanity, but perhaps always worth the effort?", u'entity_id': 19608, u'annotation_id': 9010, u'tag_id': 1225, u'entity_type': u'comment'}, {u'quote': u'We do have methods for dealing with conflict, but the challenge seems to be to get people to engage with them. Recently, a small group of members underwent training in Restorative Circles [https://www.restorativecircles.org/]. If we all understood and participated in this, it might help deal with issues that have surfaced. Relatedly, several members have developed, to differing degrees, along the path of Nonviolent Communication [https://www.cnvc.org/]. If we all interacted with each other following NVC principles, maybe that would be a highly positive influence on our community culture, and the well-being of all of us. But how does one persuade a diverse group of people with different backgrounds and histories to engage in one practice like NVC? What about other practices, like co-counselling?', u'entity_id': 830, u'annotation_id': 9009, u'tag_id': 1225, u'entity_type': u'post'}, {u'quote': u'It is important that everybody here uses and delivers contents using the same tools and integrating to others within the bigger tasks. Me too, i had to live this "rite of passage".\nThere are two considerations now. First, big changes in constituted order of space may bring changes in the way work is organised. Second, there is not a better way than changing the program, or modifying the shopfloor, to see how people react and enact in other ways, de-routinizing the ethnomethods shared at WeMake and whoever may access its social world.', u'entity_id': 864, u'annotation_id': 8985, u'tag_id': 1215, u'entity_type': u'post'}, {u'quote': u'From a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently\xa0demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.', u'entity_id': 7852, u'annotation_id': 9014, u'tag_id': 1228, u'entity_type': u'comment'}, {u'quote': u'Hello @Henrike and @DavidFromAntwerp , I could not help noticing that your\xa0approach is closed to that of our friend Giulio Quaggiotto, except he applies it to social and economic development of regions:\xa0http://www.nesta.org.uk/blog/fall-love-solution-not-problem . What he does is not ask people "what do you need?", but "what are you already doing to solve this problem?", or even "what are you already doing that is good for your local community?".\xa0\nWith a little help from Google Translate I looked into Flipped Job Market. It is really refreshing. What are your results so far, Henrike?', u'entity_id': 21821, u'annotation_id': 9016, u'tag_id': 1229, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 754, u'annotation_id': 9015, u'tag_id': 1229, u'entity_type': u'post'}, {u'quote': u"We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face\xa0criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the\xa0highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.", u'entity_id': 859, u'annotation_id': 9021, u'tag_id': 1230, u'entity_type': u'post'}, {u'quote': u"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can\xa0choose to 'bind' their room to a specific cause, donating most of the returns\xa0to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?", u'entity_id': 23131, u'annotation_id': 9020, u'tag_id': 1230, u'entity_type': u'comment'}, {u'quote': u'5) Boicott Airbnb campaign,\xa0start a serious\xa0public debate with action (put the initiative\xa0as an anti-capitalistic model\xa0that could compete with the existing one)', u'entity_id': 20627, u'annotation_id': 9019, u'tag_id': 1230, u'entity_type': u'comment'}, {u'quote': u"I do agree that until we figure out how to create valid alternatives, current platforms are indispensable.. there's no wayback... That's why we need to act to create a fairer digital economy where interests of people are central instead of profit, some of this platforms are almost impossible to create an alternative to, others I believe not.", u'entity_id': 10667, u'annotation_id': 9018, u'tag_id': 1230, u'entity_type': u'comment'}, {u'quote': u'Many learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels.', u'entity_id': 19731, u'annotation_id': 9017, u'tag_id': 1230, u'entity_type': u'comment'}, {u'quote': u"As for Medecins sans fronti\xe8res, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,\xa0 are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.", u'entity_id': 23874, u'annotation_id': 9022, u'tag_id': 1231, u'entity_type': u'comment'}, {u'quote': u'To ask, as a state bureaucrat convinced of the usefulness of CMACs might, \u201chow can we replicate this so that we can roll it out across the country at an official level?\u201d rather misses the point; it is precisely by being embedded in the community that this process of creative mutation can occur, and precisely by meeting patients outside the usual structures of state-sanctioned medical authority that a more horizontal trust and respect can be created, and a more creative approach to healthcare provision enacted.', u'entity_id': 549, u'annotation_id': 9026, u'tag_id': 1232, u'entity_type': u'post'}, {u'quote': u'If you are not a legal entity, you are obviously exempt from any authorization regime, bureaucracy requirements etc. Your scope for action is limited only by the freedom of individuals in your legal system.\xa0\nOn the downside, unincorporated initiatives cannot easily use some of the services that legal entity can. They canot hold a bank account, sign a contract, rent an office etc. They rely heavily on the good will of the people who believe in them to maintain coherence, even \xa0more so than incorporated ones.\xa0\nThe Helliniko Community Clinic is an example of a very effective care initiative that has decided not to incorporate.', u'entity_id': 5913, u'annotation_id': 9025, u'tag_id': 1232, u'entity_type': u'post'}, {u'quote': u'All of which is pretty depressing, I must admit. Hope you guys can contradict me', u'entity_id': 19025, u'annotation_id': 9024, u'tag_id': 1232, u'entity_type': u'comment'}, {u'quote': u'@Alberto, we should keep your line in mind and mull over it: not scaling as a solution to survivability!', u'entity_id': 19056, u'annotation_id': 9023, u'tag_id': 1232, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 12948, u'tag_id': 1233, u'entity_type': u'post'}, {u'quote': u"A Recollection- I asked a few questions and this was the result of our conversation.\n\n\u201cAfter meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer\u201d.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers\u201d.\n\nWe both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began\u201d.\n\nWhat prompted the action?  \u201cWe wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else.  We all could learn from one another.  So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other\u201d. \n\nWhat is the mission of CoreCareCollective? \u201cOur mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person\u2019s cancer fight: the survivors, fighters, supporters, and caregivers\u201d. \n\n\u201cEvery person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey\u201d. \n\nI had asked who else would be in collaboration, this was her response, and \u201cThe platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system\u201d.  \n\nWho do you want to reach? \u201cPeople around the world that want to share their experiences and sharing their strength\u201d. \n\nDenise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more.\n\nIt is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare.\n\nI should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.", u'entity_id': 35903, u'annotation_id': 11599, u'tag_id': 1234, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 9034, u'tag_id': 1234, u'entity_type': u'post'}, {u'quote': u"Thank you for your comment. You are right\xa0by saying that there are many ideas on healthy food and it's very difficult to find evidence for recommended daily intake of various vitamines. Your suggestion to an OpenCare challenge to gather all data on diets etc is indeed also interesting. At this moment for us this scope would be too wide. We want to focus on the group of cancer patients, while we know that besides the battle of their illness they also struggle to gain the right information. As we mentioned in our reply to Noemi's response, we realise the challenge that it's extremely important to ensure a reliable and relevant source of information for this particular group.", u'entity_id': 25187, u'annotation_id': 9033, u'tag_id': 1234, u'entity_type': u'comment'}, {u'quote': u"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !?\nOnce I searched medline (a database of scientific publications) \xa0to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' .\nCan it really be that there is a enormous hole in healthcare research here?\nCould it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?", u'entity_id': 24439, u'annotation_id': 9032, u'tag_id': 1234, u'entity_type': u'comment'}, {u'quote': u'Hi Pavlos,\nThank you very much for taking the time to reply to our initiative!\nWe agree that a varied diet is of big importance to any of us (not only cancer-patients). Can you provide us with more information/sources of research concerning the variety that you are referring to?\xa0\nA core aspect that needs to be considered specifically when talking about "anti-cancer" nutrition is that carbs and sugar should be avoided or reduced to a minimum because they "feed" cancer cells. What we are trying to say with this goes hand in hand with our comment on Noemi\'s post: to come across as a reliable and relevant source of information, the platform needs to state very explicitly what it is focusing on concerning nutrition, still at one point you have to choose a certain framework of aspects which build the basis of, in our case, the platform. No one can ensure a 100% holistic approach, but you can already get a lot further by having this intention. In the end research today might state that milk (just as an example) is bad for us and tomorrow another research might state the opposite. Its all about the framework that you define and the beliefs you formulate as a basis.', u'entity_id': 22262, u'annotation_id': 9031, u'tag_id': 1234, u'entity_type': u'comment'}, {u'quote': u'Hi @Denise Carry, I think it is important to also focus on the important of digestion/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced/consumed). This is often forgotten (way too often, I\'m afraid), even by most "food fanatics" or "health hypers", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food. Taking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas. How connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?', u'entity_id': 20297, u'annotation_id': 9030, u'tag_id': 1234, u'entity_type': u'comment'}, {u'quote': u"Having a platform where a lot of people talk to each other and share experiences that sometimes contradict each other is a lot like a forum, and making it difficult to arrive at sound advice. What would make it into\xa0real\xa0collective intelligence is research and\xa0analysis on nutrition. This\xa0would weigh a lot more than advice from a\xa0small groups of\xa0food experts (as Rune observes\xa0below). If you ever want to go that way and structure information online\xa0into a research dataset, or wish to include this in your support raising efforts, consider Edgeryders for partnering up.\xa0Alberto just wrote about how you can use network analysis and ethnography to analise texts and reach new knowledge that as a platform manager or\xa0user you can't readily see, especially if you have contributions in the orders of thousands.", u'entity_id': 18512, u'annotation_id': 9029, u'tag_id': 1234, u'entity_type': u'comment'}, {u'quote': u'As long as I remember we have been told to eat healthy /\xa0As long as I remember hospital food has had the reputation of being awful\nAs long as I have been having my lunches in a hospital I\u2019ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc.\nAs long as I have been having my lunches in a hospital the\xa0meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit.\nSo starting at the hospital we are told one thing and given the opposite.\nThe logical conclusion is that change should start at the hospital. It same goes for\xa0schools down to kindergardens.', u'entity_id': 11833, u'annotation_id': 9028, u'tag_id': 1234, u'entity_type': u'comment'}, {u'quote': u'In 2015 both of us have been diagnosed with different types of cancer. Ever since we were diagnosed with cancer until the end of our treatment we both were more than convinced our body could fight this and we eventually would win the battle. We were always pretty fanatic with sports and always had a focus on eating healthy. We immediately started to look for information on how to keep our body in the best shape during the chemo and radiation attack. During the first appointments we had at the hospital with a nurse specialized in cancer treatment, we received a lot of information on the treatment itself and its possible side effects. However, there was no information added on (healthy) food, which products to eat best during treatment or information on the possibility to continue exercising.\nAt home our search started at the internet and we looked up questions like: Is it healthy to sport during treatment? What is the best food to eat? Should we be adding supplements to our daily meals? Who can help to keep my body in the best shape?\nThrough the dietician working at the general practitioners office Carry got a first list of products, which could affect the treatment and also some products to prevent loosing too much weight. We did not know if we had to expect a weight loss, because that is what we all think chemo does to your bodies. What we forget is that you get a lot of medicines to fight the treatment side effects, which have again their own side effects, such as potentially gaining weight (take for example prednisone, one tends to store a lot of body liquids that could cause weight increase).\nThe information from the GPs dietician was not sufficient, therefore we asked for the advice of a dietician at the hospital. During the first appointment we asked all kinds of different questions, but we were shocked by the answers. Before we were ill, we ate very healthy, fresh/fair products, now we got the advice of the hospital dietician to buy ready meals in case we would did not feel well enough to cook. Or in case you would lose weight to eat artificially manufactured nutrition containing ingredients to increase weight.\nCurrently there are all kinds of \u2018food fanatics\u2019 and \u2018health hypes\u2019. We are convinced that healthy food should not be a trend. We don\u2019t want to focus on trends or hypes; our focus lies at informing people about healthy food and \u201cback to basic\u201d. We want to reach the target group of cancer patients, to help them in finding good food to fight the battle of their life. As we experienced ourselves, medical specialists at the hospital don\u2019t have enough time to guide a patient in the best way and many dieticians follow the \u2018old\u2019 rules and are promoting the medical food of the pharmaceutics industry.\nWe want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu\u2019s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy.\nNext to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.\nFiguring out the healthiest ways to fight your battle by staying in direct contact with your target group is part of specialized care, which would be the future in health care. Not general, but focus on single patients with their own problems/questions and side effects.\nChallenge\n(Customized) advice serving cancer patients during treatment (chemo, radiation,\u2026) to ensure optimal nutrition and exercise.\n\nfocusing on natural instead of artificially produced ingredients\nemphasizing the importance of regular and moderately intensive exercise.\n\nChannels\nShort-term: online (info and community)\nLong-term: face to face (workshops on two main subjects)\nActivities:\n\ndevelop and maintain a blog/website/platform with menu proposals containing healthy ingredients, working together with food coaches and researchers on this. It will be an interactive platform, on which people can also share their own experiences etc.,\ncontact points in the Netherlands on sports coaches to contact for guidance,\nset up sports projects and readings about healthy food and sports for cancer patients,\ncreate communities for healthy cooking, places where people can buy healthy food in case there are not able to cook themselves when they are very ill, or don\u2019t have a partner.\n\nType of community involved\nCommunity consists of cancer patients (no age restrictions or type of cancer)\nSolution proposed; effect on users life?\nEnsure optimal knowledge sharing to enable patients to continue the health-minded lifestyle of before their illness.\n\xa0\nHow is it open?\nIt is accessible to anybody online (could be perceived as restricting because the community is language specific and starting with the Netherlands!)\n\xa0\nHow does it \u2018care\u2019?\nThis platform contributes to care by offering a space where patients can share their knowledge and learn from each other concerning the subjects \u201chealthy nutrition\u201d and \u201cexercise\u201d. Also it allows easy access to expert knowledge. The platform is not supposed to replace or complement any scientific research sources. It is solely focusing on the easy access of exactly this information as well as the information shared amongst experts by experience.', u'entity_id': 711, u'annotation_id': 9027, u'tag_id': 1234, u'entity_type': u'post'}, {u'quote': u'"Obamacare" is arguably the number one political debate along with immigration and national security.', u'entity_id': 26630, u'annotation_id': 9036, u'tag_id': 1235, u'entity_type': u'comment'}, {u'quote': u"But I would venture [not living there, but observing from afar] that there is a similar issue in the US - people think of the status quo as 'normal' and don't see that it already has a political dimension, so attempts to disrupt the massively wasteful insurance/medical cartel [as Obamacare made some small steps to do] come up against lots of resistance even from people who might benefit from change.", u'entity_id': 28236, u'annotation_id': 9035, u'tag_id': 1235, u'entity_type': u'comment'}, {u'quote': u'This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.', u'entity_id': 671, u'annotation_id': 9037, u'tag_id': 1236, u'entity_type': u'post'}, {u'quote': u'Occupy,', u'entity_id': 521, u'annotation_id': 9038, u'tag_id': 1238, u'entity_type': u'post'}, {u'quote': u'My own questions about making a life for oneself lingered. It seemed that the deep personal investment of people is not only in making a project happen. Someone I spoke to framed it as having a chance to live the lives we want, outside the oppression experienced in the city. Wir Bauen Zukunft and their extended loving arms like Open State are building future, in much needed radical, but gentle ways. Chapeau!', u'entity_id': 36387, u'annotation_id': 11709, u'tag_id': 1908, u'entity_type': u'post'}, {u'quote': u'Now, we are collaborating online (Google Calendar and Google Docs mostly) and offline, meeting quite often at WeMake to design and deliver a local project with common goals....more to come', u'entity_id': 862, u'annotation_id': 9040, u'tag_id': 1242, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22821, u'annotation_id': 9048, u'tag_id': 1245, u'entity_type': u'comment'}, {u'quote': u'If you Google "mental health support group" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I\'m missing something). \xa0If you add "online" to that you still get relevant results, though far fewer.\nMy question then is, how would what\'s being described, or at least hinted at, here be different or perhaps better than what is already going on. \xa0Or, how can the exisiting activity be supplemented or improved? \xa0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources?', u'entity_id': 24665, u'annotation_id': 9047, u'tag_id': 1245, u'entity_type': u'comment'}, {u'quote': u'The second area of our work is e- democracy. In this strand, we\u2019ve built an open source platform DemocracIT that supports the process of public consultation, which is theoretically common in Greece, but tedious in reality. We\u2019ve tested it and presented to the governmental bodies. Besides, there is also ActiveCommons platform, which we\u2019ve designed to foster collaboration for the common good between It caters organisations, NGOs and groups of people who want to change something and need an effective tool for collaboration.', u'entity_id': 528, u'annotation_id': 9050, u'tag_id': 1246, u'entity_type': u'post'}, {u'quote': u"I'm seeking contributions, participants and co-organizers for a webinar at the end of the month about discussing on e-patients and online communities on healthcare issues and forms of activism, networking and engagement of patients, citizens, makers, etc.. in research and social shaping of medical and healthcare technology. Anyone interested is welcome in co-designing or sketching the best formula for such a live event!", u'entity_id': 21418, u'annotation_id': 9049, u'tag_id': 1246, u'entity_type': u'comment'}, {u'quote': u".. (call it what you want)\xa0is that it makes it easier to see how/ if it would\xa0translate to\xa0other groups or settings. What we don't know about the ER style of\xa0do-ocracy yet is how it would work in a real life, physical place that is not an infinite playground or resource after all - that's why I asked @marcoclausen\xa0about ruling over\xa0the vegetable beds.", u'entity_id': 22469, u'annotation_id': 9051, u'tag_id': 1247, u'entity_type': u'comment'}, {u'quote': u'The Camp we are working in, is quite open. As long as its not dangerous in any ways people can bring whatever they want.', u'entity_id': 21499, u'annotation_id': 9053, u'tag_id': 1248, u'entity_type': u'comment'}, {u'quote': u"We provide a free, open access digital lab, doing all sorts of things, from computer analysis, repair and recycling to art exhibitions, workshops, peer-learning activities, enterprise incubation, social support and more. We set up this lab as a response to unemployment, urban decline and the transformation of the job market. What we've established is an innovative methodology to invest time, not money, in ICTs. This has huge potential to address worklessness and lack of opportunities. It's worth reflecting that many of our participants in Access Space experience the kind of precarity which you are investigating with Edgeryders.", u'entity_id': 1710, u'annotation_id': 9052, u'tag_id': 1248, u'entity_type': u'post'}, {u'quote': u'The World Wide Web is increasingly useful to experiment, produce and research for identities, relations and objects in the field of "Healthcare & Innovation" such as Open Source, Open Access, 3D printing and Additive manufacturing, HCWH (Health Care Without Harm), Augmented and Virtual Reality, Co-Working, Workscaping and other important and emerging issues. The bet of PUNTOZERO is to call for interest and shape a networking model motivating healthcare professionals in sharing experiences and co-driving innovation and care programs together with patients and open networks.\nRead our agenda.\nThe idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about "healthcare", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable "umwelt" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.', u'entity_id': 686, u'annotation_id': 9066, u'tag_id': 1249, u'entity_type': u'post'}, {u'quote': u'How and how much the openness of a design and production process influences the openness of service delivery.', u'entity_id': 5749, u'annotation_id': 9055, u'tag_id': 1249, u'entity_type': u'post'}, {u'quote': u'the openness of care-related services in use (i.e. the openness of the network of care created around the delivery of a service).', u'entity_id': 5749, u'annotation_id': 9054, u'tag_id': 1249, u'entity_type': u'post'}, {u'quote': u"That's a valid point @Rachel . Although I am a big fan of documentation, I have personally not given it too much thought for OI. Partly because the group in Oakland took the approach of not having an open and rolling documentation repository. Partly because it seemed like too big an effort for now, when\xa0we are already struggling with managing all the information we do and don't have.", u'entity_id': 11937, u'annotation_id': 9069, u'tag_id': 1250, u'entity_type': u'comment'}, {u'quote': u"There is a debate about what really constitutes 'open' research still, certainly. \xa0@WinniePoncelet \xa0The response to the FAQ question 'where is the data?' as 'It will be released when the time is there. We are still in the research phase.' could be looked upon with askance by many... \xa0Most Hackuarium projects are not intensively getting all expts in progress\xa0into wiki pages, but there are definitely some that try to just get everything down to document as they go, for instance. \xa0(not worrying about being polished is key for that - the\xa0assumption is that\xa0having the 'work in progress' notice means that someone may help for this process eventually... ) I am still a bit agnostic, even though I encourage documentation asap always, and wonder how you personally feel about this.\nStarting a European Open Insulin project is awesome, bt", u'entity_id': 10027, u'annotation_id': 9068, u'tag_id': 1250, u'entity_type': u'comment'}, {u'quote': u'I got excited reading your piece @Federico Monaco!\xa0Your approach to learning\xa0and willingness to experiment is exactly what the educational system needs right now. This sums it up quite well for me: "By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals.".\xa0@trythis has some interesting\xa0points of inspiration as well...\nAre there any particular sources of inspiration you use to come up with new ways of teaching? Have your experiments\xa0ever backfired?', u'entity_id': 23739, u'annotation_id': 9067, u'tag_id': 1250, u'entity_type': u'comment'}, {u'quote': u'd shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS).', u'entity_id': 735, u'annotation_id': 9077, u'tag_id': 2139, u'entity_type': u'post'}, {u'quote': u'There is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the\xa0number of emergencies and helping save a lot of money.', u'entity_id': 26031, u'annotation_id': 9076, u'tag_id': 2139, u'entity_type': u'comment'}, {u'quote': u'A Do-It-Yourself Revolution in Diabetes Care\n\nParents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin.\n\n  \n  \n    \n    \n  \n  \n\n\n\nThis is pretty amazing: an entire open source\xa0ecosystem, from sensors to apps to insulin, emerging from patients.\xa0\n\nWhere do we want to store all this stuff?', u'entity_id': 5392, u'annotation_id': 12956, u'tag_id': 2143, u'entity_type': u'post'}, {u'quote': u'The maker movement and biohacking interest me deeply, due to their potential to overcome most of challenges the African Health system faces (e.g. many hospitals lack the basic materials, like microscopes). The possibility to modify hardware (e.g. connect a solar panel to a PCR machine and so on) is an advantage.', u'entity_id': 37182, u'annotation_id': 11769, u'tag_id': 2143, u'entity_type': u'post'}, {u'quote': u'This idea emerged as a combination of our passion for open technology and community engagement. Using technologies that have existed since the 70s,with a bit of tweaking, are cheap and perfectly functional to make this idea come true. We then give access to these tools and knowledge to anyone interested, and to encourage them to try new things out.\nThis is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros \xa0our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It\u2019s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.', u'entity_id': 732, u'annotation_id': 9168, u'tag_id': 2143, u'entity_type': u'post'}, {u'quote': u'phone.\xa0\xa0 I am also working on another project that helps introduce Bedouin women and kids in the mountains to smart textiles, and I am a consultant to the Wikimedia Foundation (the one that runs Wikipedia), working on helping find out what readers want (because no body knows yet, imagine!).\n    \xa0\n  \n   As part of OpenCare team from WeMake, where I am working on both the strategy and the harvesting of the online community and helping the people define projects that they want to implement. Moving on, I will help with physical prototyping aspects.\xa0 I believe Opencare is a wonderful initiative,\xa0 that reminds us of simple solutions that can make a difference in our lives, yet nobody thinks about them, because nobody knows those exists at first place.\xa0 Many thanks to @Costantino for offering me this opportunity.', u'entity_id': 5524, u'annotation_id': 9167, u'tag_id': 2143, u'entity_type': u'post'}, {u'quote': u'We also develop open-source hardware such as flowmeter for domesic use', u'entity_id': 735, u'annotation_id': 9166, u'tag_id': 2143, u'entity_type': u'post'}, {u'quote': u'It\u2019s a open source (meaning that all details of how to replicate are publically available) device for strengthening the hand, using FES (mecfes.wikispaces.com).', u'entity_id': 720, u'annotation_id': 9165, u'tag_id': 2143, u'entity_type': u'post'}, {u'quote': u'The\xa0team will be lead by Luping Xu and Francois Grey (active in open hardware community at cyberlab\xa0- read more\xa0here\xa0\xa0http://cds.cern.ch/journal/CERNBulletin/2016/11/News%20Articles/2137964?ln=en\xa0) , and will actively engage with the maker spaces in Shenzhen.', u'entity_id': 5491, u'annotation_id': 9162, u'tag_id': 2143, u'entity_type': u'post'}, {u'quote': u'I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.', u'entity_id': 37593, u'annotation_id': 11828, u'tag_id': 1252, u'entity_type': u'comment'}, {u'quote': u"We provide a free, open access digital lab, doing all sorts of things, from computer analysis, repair and recycling to art exhibitions, workshops, peer-learning activities, enterprise incubation, social support and more. We set up this lab as a response to unemployment, urban decline and the transformation of the job market. What we've established is an innovative methodology to invest time, not money, in ICTs. This has huge potential to address worklessness and lack of opportunities. It's worth reflecting that many of our participants in Access Space experience the kind of precarity which you are investigating with Edgeryders.", u'entity_id': 1710, u'annotation_id': 9079, u'tag_id': 1252, u'entity_type': u'post'}, {u'quote': u"as doing the clinic during the day, but a lot of people had problems getting childcare or said they could not come because of their working hours, so I am thinking I will run it from the afternoon into the evening instead, to give people a chance to come along who otherwise couldn't. The other option would be Saturday morning, which would certainly get people in", u'entity_id': 17844, u'annotation_id': 9169, u'tag_id': 1260, u'entity_type': u'comment'}, {u'quote': u"I started this\xa0simple wiki for beginners and experts alike to get oriented in contributing to the Open Insulin project. For beginners it should be\xa0a starting point to learn more about the technology. It should help everyone better navigate the information we have archived on the Google Drive.\n\nThis wiki contains:\n\n\n\n\nHow do I\xa0get involved?\n\n\nResearch Status\n\n\nTechnology Basics\n\n\nWhere do I find information?\n\n\nFAQ\n\n\n\nAnyone who wants to help build this can join in. SImple things\xa0you can do:\n\n\n\n\n\nFind good quality online educational material that offers an introduction to\xa0synthetic biology, molecular biology, protein engineering, genetics and other relevant fields. Add it to the 'Technology Basics' section with a short description containing what's it about and why people should use it.\n\n\n\nHelp in organising information. Are you a pro in organising scientific articles and data? Great, we can use help with that! Get in touch with @WinniePoncelet .\n\n\n\nAdd Frequently Asked Questions. Have you been asked about the project? Put the question and your answer in the FAQ!\n\n1. How do I get involved?\n\nYou are a beginner or a (bio)scientist: everyone is\xa0welcome to join! We can use your brains, energy\xa0and creativity regardless of your prior knowledge.\n\nAs a beginner or non-bioscientist, you may be interested in learning more about the technology. It is super interesting stuff and it will also help you to contribute to the project at a technological level. Take a look at the technology basics below.\n\nAs a bioscientist trained in the field, you can jump right in. Take a look below at the research status and introduce yourself on the forum or at one of the live meetings (see introduction post for the latest\xa0info).\n\nYou can also help us by donating materials or money, and we'd be forever grateful!\xa0Get in touch to discuss how it\xa0could work.\n\n2. Research status\n\nCurrent step: awaiting the arrival of the plasmid samples from the team in Oakland.\n\nNext step: use the plasmids to transform E. coli, in order to replicate the work of Oakland and set a reference point for further optimization.\n\nUpdates from the Oakland team can be found on their website.\n\n3. Technology basics\n\nMOOC on production of medicines, with insulin as a case. Not currently online but @arnepauwels has notes.\n\nThis MOOC on synthetic biology will require some additional study (eg. looking up terms on Wikipedia)\xa0but guides you through the basics.\xa0\n\nMIT offers a very extensive range of\xa0biology courses (some of which are written in comic sans). One of them is this solid introduction to biology on edX. Choose recent courses, knowledge is outdated fast as the field changes rapidly.\n\nCan anyone recommend other specific courses?\n\n4. Where do I find information?\n\nOn the Google Drive, and we're working on organizing it! (we're limiting access to team members, get in touch if you're interested).\n\n5. FAQ\n\n\nYou're working open source, where's the data?\n\n\n\nIt is not currently openly available (see the discussion\xa0below).\n\n\n\n\nAre you going to inject hacked\xa0drugs into people?\n\n\n\nNo. The goal (for now) is a production protocol for the insulin molecule.", u'entity_id': 6412, u'annotation_id': 12951, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'I am sure you will also enjoy my post on the festival...be sure that the community is in the root of all. as in the blog on open insulin it is from community to lab....it is one of the consensus I had with @winnieponcelet and @anthony_di_franco.', u'entity_id': 38882, u'annotation_id': 11858, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u'The most pressing need now is to set up a patient cooperative for Open Insulin and how to prototype it.And clear out the international collaboration that is now emerging in the open insulin research.\n\nSome history of the project.\n\nEarly 2015 in Counter Culture Labs, biohacker collective in Oakland, developed consensus around the idea that we could make insulin in a lab like their. The idea is worth pursuing, the technology is there. First it was a technical motivation, afterwards it was clear that insulin was a social and economical issue. \n\nMany people don\u2019t have access, it\u2019s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based).\n\nThere\u2019s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production.\n\nScience and engineering:Went through one proof of concept iteration in an E. coli bacteria (for troubleshooting methods). Took about a year. We made a precursor protein to insulin. Bacteria however is not able to convert the precursor into insulin, so since early 2017 we\u2019re looking at yeast, because that organism can do everything inside the organism. The protocol needs to be simple and easily reproduced.\n\n6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production.\n\nTeams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles. \n\nThe organisation needs to ultimately be accountable to diabetes patients. It can\u2019t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don\u2019t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.\n\nMany semi-independent manufacturing efforts that are localised, but sharing knowledge. A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing.\n\nThe FDA is the biggest player in making this a reality. Big part of this is making a rigorous case and showing the costs of illness and the benefits of our alternative. Depending on how their own incentives work, they might not care. \n\nWe have 2 goals, proposal is to split in two groups:\n\n1. How do we move from here to this cooperative?\n\nA cooperative as a platform where patients would be the main stakeholders.The patent is not to stop other people from doing it, but to protect the \n\nCharacteristics of the agreement:\n\nRate of profit determined by patientsWhere it is invested is determined by patients.\n\nExample of medical cannabis cooperatives. Maybe we can use it as a template for our organisation. Tailor this to the local jurisdiction. \n\nWe need some kind of global scale organisation that holds the IP in custody. Perhaps a Swiss foundation. A public benefit corporation.\n\nForging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.Lucas Gonzales. Epidemiologist. His job is to prepare for flu pandemics in the canary islands. As part of preparing the plan, he found out there\u2019s 8000\u2019s diabetics in the CI and there is no capacity on the island (comes from Germany). So in case of pandemic, they are screwed. This could be an angle.\n\nSynthetic pancreas people. Firewall of FDA and then they appealed to free speech. They don\u2019t sell, yet share the schematics. \n\nMake it look less like a market transaction, and more like a club: participating in the testing. \n\nAnalogy to Open Source Ecology. Centralized body of knowledge, localized operation to build machines by doing workshops etc. \n\n\nChris Cook:\nAt the global level: memorandum of understanding, but otherwise you\u2019re free to do what you want.\n\n\nUnincorporated association:Agreement, but not in any legal form. 2 pager. For very early stage funding. Like a club. People have an account in the name of the club. This could be global from day 1, with members. It has a \u2018hatching clause\u2019 which makes it hatch into an actual legal form. \n\nAction items:\n\n\nReview relevant structures\nPitch this to city governments (Milan next month, Oakland, Ghent)\nHave a legal structure, so that funders know where their money goes\nCali cooperative weed\nCooperatives in calif and europe (Switzerland? Winnie\u2019s contact Malcolm Bain? European Cooperative Association)\nCentralized holder of IP\n\n\nReview the agreement of Chris.\n\nHave an inside trusted partner when you pitch this, so that\u2019s it\u2019s not 50 50 in they liked it not. Clear action plan with timelines. Open to input. Jump in early for a premium. Weigh the pro\u2019s and con\u2019s of premium. Winnie can talk about it with the head of strategy for the City of Ghent.\n\nIn Oakland: never got to the head, always mid or low level managers. You need to get people in power to not necessarily endorse it, but mainly not stop it. An endorsement would really help though. A paragraph and collect signatures of \u2018innovation, super cool project\u2019. \n\n2. How do we do international collaboration?\n\n\nWinnie:\n\nPeople are disgusted by how biotechnology industry works. Morally it\u2019s not okay that people are taxed so much money. We started a collaboration in March between Oakland, Ghent, and Sidney. It was hard to get access to information - where are the best practices documented. The team in Oakland was spread thin, so this makes it hard to scale internationally. Coincidentally it became good to collaborate, but no investment to find sinergies, for example split the experiments between groups.\nWe\u2019ve been in touch online only, and visiting helped a lot to develop trust, despite calling on skype every 2 weeks.\nTwo key problems:\n\nDocumentation and\nTrust\n\n\n\n\n\nGaby:\nIs it a problem of infrastructure - better tools, better software, or about changing the culture?\n\n\nWinnie:\n\nIt\u2019s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it\u2019s going to be very bumpy.\nNo platform for documentation yet.We should have a method of getting everyone on board, in difft timezones and geographical points?\nThomas: What is the patients\u2019 perception?In Belgium, the insulin is covered by the government, so not many incentives to participate among that group. The motivation here is the biotech industry.\n\n\n\n\nCindys:\n\nBuild on an existing community that has thousands of people in it, and not take on the burden of building a new platform.The Public Lab community - good for discussion and file sharing, and replicability.\nAttend the barnraising and do a workshop there? \n\n\n\n\nMatteo:\nReplicability across countries: there is a lack of culture of open science and a knowledge gap in biology.A transnational cooperative system funded by a big donor which fosters development in underdev countries? The path from need to solution is longer there - building trust, community building takes more time.\n\n\nWinnie:\nIdeally find a big donor but with niche interest locally/ in a region. The community coordination and interface needs to be funded too - i.e. the Oakland team is more focused on the research itself.\n\n\n\nCindys:\nPublic Lab has developed frameworks to use - to create a context and make sure it feeds back and then it is championed, took forward by the organisation.\n\n\n\nGaby:\n\nLearning to do science by sharing information, many times tacit. But you either have to think of the role of the person making this, or have an incentive - a place where we give recognition where people actually see it and appreciate the value.\nGroups back together\nA platform cooperative as a club insulin: the insulin users and platform service provider (management, quality control). A global framework in which local production can put its roots in local jurisdiction. The overarching club, anyone can join and it doesn\u2019t own anything.\n\n\n\n\nCindys:\nThree issues discussed - platform documentation, trust, building the network\n\n\nThomas:\nInterested in local production, is in a process of launching a High Institute of Open (?) Science. He\u2019s going back to Cameroon, it would be an opportunity to test open insulin there. \n\n\n\nGaby:\nSharing information', u'entity_id': 38856, u'annotation_id': 11861, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'Whoa, hurray for @thomasmboa! I really enjoyed reading your post and it is amazing that just 3 weeks ago you were writing about a science shop and a lab, and now you are setting up the lab! Do you intend to make OpenInsulin the core, priority project of the lab?', u'entity_id': 38881, u'annotation_id': 11857, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u"If all goes well, there should be an Open Insulin group starting in Cameroon in the coming months. Thomas' blog post just went live on the website: http://openinsulin.org/open-insulin-in-africa-from-local-communities-to-the-lab/", u'entity_id': 38850, u'annotation_id': 11853, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u'Outside of these reflections, concretely, one project I hope to collaborate more upon in the future is to join in somehow for the open insulin project, most likely via Hackuarium and its newly inaugurated P1 lab.', u'entity_id': 38966, u'annotation_id': 11724, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u'Another rich learning aspect is my involvement in the Open Insulin project. I experience the dynamics, obstacles and opportunities in a complex citizen science project firsthand, much more explicit than in any project I have done before. The lessons have not fully formed yet, but my initial assumptions have certainly been challenged. I hope to clear this out in the next months and report on it.', u'entity_id': 6459, u'annotation_id': 9094, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 31041, u'annotation_id': 9093, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 28264, u'annotation_id': 9092, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u'That does not mean Open Insulin should not deploy digi.bio stuff. After all, it as much for the learning journey as it is for producing insulin. But you guys will still need to apply domain expertise to figure out which sequences are most promising, before testing.', u'entity_id': 16210, u'annotation_id': 9091, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u"There have been some ideas floating around on a new possible avenue of research for the Open Insulin project. Anthony and me got in touch with Federico from digi.bio, who are developing an open source microfluidic device. I\xa0only got to writing a summary of the conversation now.\nIt boils down to this.\xa0There is someone in CCL planning to generate a bunch of genetic sequences that could be potentially interesting as linkers for bringing the insulin A and B chain together more effectively. Hopefully this would result in many viable options, that have to be tested in lab experiments.\nTesting many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here\xa0(cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequences.\nThe optimization part is something that we could work on\xa0here in Belgium. Federico is based in China/Amsterdam, so he is around close enough to help us get started and betatest his chip. This would give a new dimension to replicating the work previously done by CCL, if we could test culturing the bacteria on the chips. If it works, it would even be pretty valuable step towards opening up biotech research in general.\nThis is getting more and more interesting... Any thoughts @ritavht | @stevenvv90 ?\nI dug up some specs of the device (approximates) that Federico shared:\n\nUp to 20 liquids in- and output\nRun program to get a droplet from the liquid: 300nl-2\xb5l depending on size of device\nTemperature goes from 4\xb0C to 95\xb0C, so you could run a PCR and anything in between (eg. cell incubation at 37\xb0C)\nMagnet to do purification (unsure about this)\nThey're planning to add fluorescence detection (months in the future)\nIt should be possible to do everything on the chip: transformation, cloning, selection, screening, ... Also planning to add electroporation.", u'entity_id': 6291, u'annotation_id': 9090, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'Hi all, yesterday (2nd of June) I had a Google Hangout with Noel Carrascal on designing the insulin construct. Relevant to @WinniePoncelet, @BramDeJaegher.\nPost-translational insulin consists of two chains (A and B) that are bonded through disulfide bonds. In humans this is obtained through post-translational modification of a single peptide chain. Such machinery is not available in an E. coli host. Noel is studying how to design the construct for insulin such that a the two parts can reliably find each other.\n\xa0\nHis design is based on the strong affinity between barnase and barstar. Barnase (resp. barstar) are connected to one of the insulin chains using a linker. When the barnase-barstar complex is formed, insulin should form by proximity. This also circumvents the risk of the formation of two chains of the same kind bonding (A-A or B-B).\n\xa0\nSuch insuline-barnase-barnstar complexes should aggregate into a large complex of many such molecules, from which pure, functional insulin can easily be cleaved. Admittedly, I did not follow this 100%.\xa0\n\xa0\nThe challenge here is to design such linker as such the complex can be formed. To this end, Noel writes his own software to do mechanistic molecular modelling. He computes all the molecular (polar, Vanderwaals, \u2026) interactions between amino acids to finally obtain the stability of a complex. For a given linker, this is represented by a set of (sparse) matrixes quantifying the strength of the interactions between the amino acids.\n\xa0\nThis is the point where machine learning comes into play:\n\nUsing a set of example matrices, predict the matrices for new AA chains\nPerhaps use the information to directly build a model to predict stability of a given linker? The mechanistic information should somehow be used to improve the model (i.e. Vapnik\u2019s learning with privileged information)\nGiven a model, optimize the linker (SA, GA\u2026)\nBayesian optimization to search for promising under model uncertainty?\n\nMichiel out!', u'entity_id': 6379, u'annotation_id': 9089, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u"Open Insulin so far\nA group of citizen scientists at Counter Culture Labs, a hacker space in Oakland, California has been developing an open-source protocol to make insulin for about a year and a half. The world needs more economical sources of insulin because 1 in 2 people who need it lack access to insulin worldwide, and this burden falls disproportionately on the poorest communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale\xa0groups working in distributed fashion\xa0to experiment with and produce other biologics.\nWe're very near to reaching our first milestone of producing and isolating proinsulin, after which we'll be redoubling our efforts to develop a simple, end-to-end protocol to produce insulin. We've had several collaborators join our effort in the meantime, including a group at ReaGent in Belgium, another at Biofoundry in Sydney, and another here with us in the Bay Area at Fair Access Medicines.\nWhat have we learned about having citizens define and help advance our research project?\nOur team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn\xa0and contribute. The sharing of knowledge and responsibilities\xa0within our group thus mirrored what we were seeking to support beyond the group.\nHow do we ensure long term sustainability for our project?\nWe originally raised a little over $15k to get started via a crowdfunding campaign, a small budget that has nonetheless proven adequate. We've been fortunate that we've been able to stretch our financial resources a long way with donated and deeply discounted second-hand equipment and reagents, and the contributions of skilled volunteers to keep our equipment running. Thus we have no recurring expenses, which has proven to be the most important way to conserver resources and keep the project sustainable in its high-risk seed phase. This has put us on a firm foundation to\xa0reach our first milestone, the production and isolation of proinsulin, the first major step on the way to making the mature, active form of insulin. Once that is done, we plan to pursue our next steps and undertake whatever further fundraising effort we may need to do so, possibly involving a distributed ownership structure and holding and sharing of the fruits of our efforts under some sort of peer production license\xa0to ensure we develop a viable commons around our work.\nChallenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!\nHow do we encourage change at policy level?\nWe have learned more about how much we don't know about the complex geopolitics and economics around insulin than about how to directly address the policy dimensions of access to insulin and access to medicine in general. But the fact remains that our fundamental rationale for our work is economical, and has to do with the impact that decentralized production could have immediately and how it could change the landscape of incentives in the longer term to favor better policies.\xa0\nWe hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face\xa0criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the\xa0highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.\nThen, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.", u'entity_id': 859, u'annotation_id': 9088, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'And drinks were had. Only short updates as not much happened in the last two weeks. We further planned the trip to Amsterdam for the biohackathon and discussed general things.\n\nWe can use the leftover iGem funds for buying consumables. This will get us going with the plasimids that are set to arrive soon\nWe have access to a Biosafety Level 2 lab in Ghent, yay!\n\nWe also asked ourselves: what is the legislation around\xa0genetic engineering in open sea? Could it be unregulated? A first short search on the internet did not deliver any results...', u'entity_id': 8319, u'annotation_id': 9087, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u'Hi all, I propose to meet each other at Geuzenhuis\xa0at 8pm this Wednesday the 21st for the open insulin meeting. We might as well combine the get together\xa0with a drink. Hope to see you there!', u'entity_id': 6422, u'annotation_id': 9086, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'Hi @dfko ! Thanks for posting your session proposal draft. Your remarks about information sharing and organization connect with me, not only because being part of the international Open Insulin collab. Also because when talking to people in several open and participatory science projects over the last year, the same questions keep popping up.\nPerhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects?\nAn outcome of this workshop could be a framework you can readily use in the project, and that others can use for their projects.\nThe other part of the session can be you sharing experiences, outcomes or anything you think is worth telling.\xa0\nWhat do you think?', u'entity_id': 7889, u'annotation_id': 9085, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u"Got some news that CCL is ready to ship us the plasmids within the week, and maybe the organisms. @ritavht has been looking up the stuff for growing up the organisms if they come as a culture. Now there's also the possibility that we'll start from the plasmids, so we should prepare for that as well.\nWithin the week means I'll be out of action due to medical reasons. We can use this as a strength as I'll be home all day for sure to receive the samples . Is anyone up for leading the first rounds of lab work to get going with the plasmids/cultures?\nWe can use this thread to further coordinate the lab work.\nSome pings for sharing the news:", u'entity_id': 6325, u'annotation_id': 9084, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'The goal is first to make normal human insulin\xa0using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the', u'entity_id': 26033, u'annotation_id': 9083, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u"So looking at your crowdfunding,\xa0people not only\xa0support, but actually\xa0fund scientific\xa0research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led?\nHow long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?", u'entity_id': 10213, u'annotation_id': 9082, u'tag_id': 1253, u'entity_type': u'comment'}, {u'quote': u'If we can achieve the creation of open source insulin, it could contribute to at least three important goals - first, by making insulin production more economical at a smaller scale, and opening up manufacturing to much more competition, it could improve cost and access for patients. Second, we hope the protocol will serve as a basis for future research into improvements to insulin - variants that are longer acting, shorter acting, more temperature stable, and so on - that address different concerns that arise in treatment. Third, we hope it might serve as a basis for research and production of other proteins by small groups, and open up participation in research and development to accelerate progress in other aspects of diabetes treatment besides insulin and other areas of science and medicine besides diabetes treatment.\nCurrently we\u2019re working on a novel method to produce human insulin, which is not patented, and as far as I know is not patentable. There are variations on normal human insulin to make them longer or shorter acting, which involve very small changes to the sequence that codes for human insulin.', u'entity_id': 552, u'annotation_id': 9081, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'About a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.', u'entity_id': 523, u'annotation_id': 9080, u'tag_id': 1253, u'entity_type': u'post'}, {u'quote': u'holding space: being open to the perspective without taking it personally, listening with from an open space', u'entity_id': 6401, u'annotation_id': 12957, u'tag_id': 2144, u'entity_type': u'post'}, {u'quote': u'We have to change family, education, political estambilsmenta, police,\nthe mind is like a parachute works only when it is open\nit is easier to break an atom than a prejudice', u'entity_id': 857, u'annotation_id': 9170, u'tag_id': 2144, u'entity_type': u'post'}, {u'quote': u'These have been the issues of many open.citizen science projects, including ones I am involved in. Even beyond citizen.open science this is true. On June 28th we had a community call to discuss common threads across the themes at the festival. Focus points will be funding and funding policies and coordination overhead.', u'entity_id': 6459, u'annotation_id': 9187, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u'What do you say if we explore openness and creative energy itself. We could explore this theme. How can we be more in alignment with ourselves/ our own creative energy? My experience is that when I\'m good in my energy I use a combination of being both intentful as well as open to whatever comes up (inside of me). So it\'s a combination of receptiveness and creative intent. So how can one cultivate the quality of being sensitive/ receptive and powerful/ intentful? Vulnerable as well as powerful. Loving as well as clear. Open as well as practical and creating physically (in whatever form excites one the most).\xa0\nI\'m excited about this theme. Would you like to explore this using the circle of openness? We could for instance pick a week at The Reef where we have circles every afternoon/ evening, while during the day everyone goes about their "normal"/ personal activities.\xa0\nWhat do you say? @Noemi, @Nadia, @Matthias, and others...?', u'entity_id': 26687, u'annotation_id': 9186, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u"Some of the meetings were extremely fruitful and transformative. Others were okay and sometimes a bit boring. What determined the quality of the meetings was the openess and willingness to share from an honest and authentic place, and to really be curious to share what feels exciting and challenging to someone. During the meetings where the mayority of the participants was willing to listen and feel into what's relevant at that time, there was a magical openness and connection among the group. I truly enjoyed these meetings and they were one of the most beautiful shared moments of my life. What I also enjoyed is the power to transform through awareness. By expressing a doubt or a challenge and openly looking at it, it became possible to take distance from the perspective and let go of it. Also the awareness of the group seemed to stimulate and hold space for sharing these vulnerable perspectives.", u'entity_id': 6401, u'annotation_id': 9185, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u'Thanks for sharing your views on this. Not opening up data right away is a compromise for sure, one that I do not particularly like, but\xa0I can see reasons. Maybe these\xa0are wrong,\xa0I have no answers.', u'entity_id': 18064, u'annotation_id': 9184, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u', especially when you consider those\xa0options for cc, so open stays forever open and non-profit (thanks for pointing this out, @Alberto !)!', u'entity_id': 16714, u'annotation_id': 9183, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u'here is no opennness without letting go of control. Keep your eyes on the ball: if your goal is cheap insulin, or shoes that reap the health benefits of barefoot walking, you win even if it is Novartis or Nike delivering it. In open source, most people consider that open source is winning exactly because business uses it (and, now, contributes to maintaining it). Linux is everywhere except your laptop; if you are hellbent on open source, or cost-sensitive, you can also get a Linux laptop, with Linux being free as in both speech and beer.', u'entity_id': 12671, u'annotation_id': 9182, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u'We are likely at the start of a similar revolution like the digital revolution. That means we have the chance to try and anticipate this time round; to try and prepare people; to embed values, like openness and inclusiveness, that make sure we don\u2019t need to fix the problems of accessibility and literacy afterwards.', u'entity_id': 530, u'annotation_id': 9181, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u"Now, as the demos has been neglected and their voice hijacked during the last referendum, it's time to accept, at least tolerate, widespread civil disobedience that will drive the movement. 62% that disagreed has been silent so far, but it will have to speak soon. Even more, what seems to be an alternative idea, is not alternative anymore there - it's the only way out. Greece is exploring the open data tools and sharing knowledge, prototyping new was of accountability, transparency, decision making. And here the health and care appear again. Pavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece. These are the ways in which delivering health care has changed, in which social organization has challenged the systemic shortcomings. From those experiments and pieces emerges a complex, wide image of more inclusive future. It is built on the exchange of ideas and practices in an open manner. It rethinks the way we deliver care in a more decentralized way, more concentrated on prevention. It reframes urban food systems by educating people on the impact of what they eat on their health. Contemporary lifestyle jeopardizes 50 years of development in the health sector - food related diseases, new viruses, climate change, they all have a huge, negative impact on the quality of our lives. Technology and science, accompanied by open data and sharing, can prevent disastrous effects of those phenomena.", u'entity_id': 704, u'annotation_id': 9180, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u'@Simonedb I agree with you that it is extremely important to remain open to other ideas and projects, and this is why we were so happy to participate at the Edgeryders workshop in Thessaloniki where we met this amazing community of people! At the same time, it is also important to have clear values and objectives, so that people trust you. So openness, cooperation and values can go a long way and can bring very creative results, especially on a large or global scale.', u'entity_id': 24572, u'annotation_id': 9179, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u'It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.', u'entity_id': 716, u'annotation_id': 9178, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u'@ the Story you mentioned- quite interesting! open discussions help.....\xa0can\u2019t get any more open than Twitter. \xa0Using it to share info, raise awareness and openly discuss mental health problems from different perspectives.\xa0Social media is changing the world, and its changing how people with issues connect with each other. The capability to learn from , share not only in the immediate localities but over the globe.', u'entity_id': 27824, u'annotation_id': 9177, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u'Really encouraging to read this, Frederico. I am involved in an emerging group (we call it Caring for Life) looking to acquire care homes in the UK and start to liberate the staff and transform the way care is given. Like you, we are inspired by an open paradigm of care giving, as well as stories of self-managing organisations such as Buurtzorg. It is early days yet but when we have got a bit further, it would be good to hear more about your work and\xa0 approach', u'entity_id': 26035, u'annotation_id': 9176, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u'For the participants, the future of care innovation\xa0is closely connected to openess and the availability of public space. Not surprisingly, many people appreciated the power of urban gardening in offering green spaces, but also in building a sense of community in the neighbourhood.', u'entity_id': 736, u'annotation_id': 9175, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u"Places like ReaGent spark creativity in sciences by working in an accessible, open and flexible manner. Their mission now is to give access to this type of education to the whole of Flanders, and extend their network by inviting for example designers to come and create biodegradable materials.\nAs OPENandchange allied, ReaGent would bring about the same qualities to the application: they would bring scientific education, which in turn would be used in innovation and hacking applicable in care.\nIf you have advice or\xa0another project which is relevant, let's discuss it here. A question to get the discussion going: what is the fairest way in the long term to\xa0fund\xa0education outside of, but\xa0as an addition to, the traditional state-funded system\xa0- from who\xa0and how?", u'entity_id': 715, u'annotation_id': 9174, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u'People are more and more aware that biology will shape future technology, by improving its performance and making it more sustainable. Yet both researchers and students lack access to knowledge about it - especially in a form of a laboratory, where everyone is free to experiment, try, learn, exchange and meet. Biology education is becoming outdated and we need students able to design the sustainable solutions of the future.\xa0The situation has been changing in the past years across Europe - many graduates, biology enthusiasts, opened biolabs equipped with instruments that they built themselves or that companies were giving away. Surprisingly, it\u2019s a rather common situation - for many of the businesses the costs of maintenance or even disposal of these sophisticated machines is higher than just giving them away to whomever would be interested to use it.', u'entity_id': 715, u'annotation_id': 9173, u'tag_id': 1262, u'entity_type': u'post'}, {u'quote': u"My sister lives in classical Cit\xe9 house\xa0in Ghent. Cit\xe9 houses\xa0are small, cheap houses that were built for\xa0the former poor working classes\xa0back in the day. They are mostly\xa0built in a way that allows more interaction between the inhabitants. There is\xa0a shared open space in the middle, which is free of traffic and is usually filled in with things people chose: tables, barbecues, little gardens, ...\nThe cit\xe9 where my sister lives is very lively. There are\xa0a lot of social interactions because people spend a lot of time outside, organise things together, borrow stuff, etc. Everyone knows everyone.\nThen again, this is a lot less the case in the cit\xe9 right next to my sister's. People don't interact that much and the social ties aren't as rich. I'm not sure what causes this, because the same basic elements are there. Does it come down to the people? What do you think?", u'entity_id': 26044, u'annotation_id': 9172, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u'An important question we ask ourselves is how do we keep this open to all forms of life that would grow our power and we theirs', u'entity_id': 21004, u'annotation_id': 9171, u'tag_id': 1262, u'entity_type': u'comment'}, {u'quote': u'Quite a few curious people who participate in the OpenCare conversation\xa0about care\xa0end up engaging with the research team in a different conversation: the one\xa0about OpenCare as a research project.\xa0This is a lovely\xa0side effect of OpenCare\'s radical transparency. We practice a sort of open notebook science.\xa0We don\'t publish only results, but also questions, doubts, within-team disagreements, half-baked ideas. This is made more effective by a specificity of OpenCare:\xa0the community and the team are in separate "rooms" of the same online platform, edgeryders.eu. People who hang around it\xa0can\'t help noticing the stream of research project updates. Some of them engage.\xa0\n\nThis was expected. But I was not expecting the magnitude of the effect. 81 people have contributed at least one comment to the research team space. The team\'s own numerosity fluctuates, but it\'s about 20. The others are just people from the community who drop in to ask questions or make suggestions. And they outnumber us three to one.\n\nIn the network diagrams, nodes are color- and size coded by in-degree. You can think of in-degree as a measure of the interest that the person\'s contribution elicits in the conversation. By this metric, it is clear that self-selected community members who just jump in\xa0are making a major contribution to the OpenCare research effort. The highest in-degree individuals who are not affiliated with any of the partners are @Federico_Monaco (ranks 7th by in-degree), @Rune (ranks 13th) and @Francesco_Maria_ZAVA (ranks 16th).\xa0\n\nThe conversation about\xa0OpenCare as a project (to the right of the picture)\xa0is of the same order of magnitude as that about open care as a potential pathway to societal well-being (to the left). It needs to be said, however, that the former has a lot of menial content: agreeing about a time and place to meet, requesting administrative information etc. \xa0\n\nWhat are the consequences of all this activity? More diversity in research. More space for participation. With a bit of luck, more and higher quality scientific output.\xa0My favourite story is this: a community member, the already mentioned Federico Monaco, has proposed we do a paper together. He had found a call for papers in a journal he follows, and thought it a good fit. His proposal stirred the rest of the team into action. His thread received over 50 comments. A\xa0draft abstract was then uploaded onto a public wiki\xa0for community scrutiny and feedback.\n\nMany people sent contributions large and small. The large ones (example: that of\xa0Ezio \u2013 here) did most of the heavy lifting. But the process had a role also for smaller ones. People like myself, who did not feel confident to step in as co-authors, were able to offer some small help\xa0without having to take responsbility for the whole thing. Federico led with a firm but light touch, asking everyone who volunteered any thought what role they wanted to play in the paper. For example, @Yannick \u2013 also\xa0not\xa0a member of the OpenCare team \u2013 was offered co-authorship (but declined). All of this happened out in the open. As you\xa0read the whole thread, you can see ideas form through the discussion of the co-authors. Collective intelligence about collective intelligence!\xa0\n\nInterdisciplinarity happened quite naturally as a result of the open process. The final submission listed five authors: Federico himself (a medical anthropologist); @Ezio_Manzini (a designer for social innovation); @Noemi (a social scientist); @Amelia (an ethnographer); myself (a network scientist). How cool is that?\n\nAnother advantage of doing things this way is increased accountability to the people who take part\xa0in the main conversation, the one about care. Through the research team forum, they can ask question and make proposals. This should mitigate the perceived risk of researchers taking an exploitative attitude towards people\'s contributions. The operative word here is "perceived". We have the best intentions, but we recognize this is not enough. We are determined to demonstrate them to the community, and transparency goes a long way towards doing it.\xa0\n\nI think that, together, we are making OpenCare... open. I had never had the luxury of running a research project with such transparency. I like it a lot, and hope to keep doing so in the future. What do others think?', u'entity_id': 6175, u'annotation_id': 12952, u'tag_id': 1254, u'entity_type': u'post'}, {u'quote': u"There is a debate about what really constitutes 'open' research still, certainly. \xa0@WinniePoncelet \xa0The response to the FAQ question 'where is the data?' as 'It will be released when the time is there. We are still in the research phase.' could be looked upon with askance by many... \xa0Most Hackuarium projects are not intensively getting all expts in progress\xa0into wiki pages, but there are definitely some that try to just get everything down to document as they go, for instance. \xa0(not worrying about being polished is key for that - the\xa0assumption is that\xa0having the 'work in progress' notice means that someone may help for this process eventually... ) I am still a bit agnostic, even though I encourage documentation asap always, and wonder how you personally feel about this.\nStarting a European Open Insulin project is awesome, btw!", u'entity_id': 10027, u'annotation_id': 9098, u'tag_id': 1254, u'entity_type': u'comment'}, {u'quote': u"Got some news that CCL is ready to ship us the plasmids within the week, and maybe the organisms. @ritavht has been looking up the stuff for growing up the organisms if they come as a culture. Now there's also the possibility that we'll start from the plasmids, so we should prepare for that as well.\nWithin the week means I'll be out of action due to medical reasons. We can use this as a strength as I'll be home all day for sure to receive the samples . Is anyone up for leading the first rounds of lab work to get going with the plasmids/cultures?\nWe can use this thread to further coordinate the lab work.\nSome pings for sharing the news:", u'entity_id': 6325, u'annotation_id': 9097, u'tag_id': 1254, u'entity_type': u'post'}, {u'quote': u"That's not quite the plan we've got planned for the project.\xa0We share your concern for questions of safety and ethics so we are only trying to accomplish a proof of concept right now.\nThe goal is first to make normal human insulin\xa0using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the biosimilar regime, which is mid-way between the rigor required in vetting an entirely new drug and that required of a copy of an old one made with strictly chemical means. This was the plan we outlined in our original crowdfunding pitch and remains our current thinking.\nWe'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a \xa0prospect,\xa0I doubt there would be enough that's novel about our work to qualify it as fundable science.", u'entity_id': 26033, u'annotation_id': 9096, u'tag_id': 1254, u'entity_type': u'comment'}, {u'quote': u'"EU is spending billions of euros in research projects. Consortia of research institutes and big EU companies receive huge amounts of money to produce amazing technologies. Technologies that need only a few months of work to become great, potentially life\xadchanging products. But most of them remain unused for years within the walls of the institutes that produce them. It seems absurd, but rarely does anyone undertake the little work that is required to bring top notch scientific results to our everyday lives. It is also common that researchers simply cannot grasp the direct impact a technology they create can have on everyday life, if applied in a friendly, accessible way."', u'entity_id': 528, u'annotation_id': 9095, u'tag_id': 1254, u'entity_type': u'post'}, {u'quote': u'Noemi: Help with feedback on the programme pls?\xa0https://edgeryders.eu/openvillage/program\nOpen Policy making group in Milano as they work on\xa0Collectively enforcing a mobility policy. How do you make people comply with this? Its cheaper for shop owners to pay the fine. Working with social designers, ethnographers. Collective law enforcement. Is it about understanding constraints at a system level? A live debate\u2026? Let Noemi know what is needed to go deeper on this theme.\xa0\nDo a search on the network and see what work is happening on policy and explore gaps. Send invitation to get people to participate in a panel- starting with @Luciascopelliti @Matteo & co.', u'entity_id': 6415, u'annotation_id': 9100, u'tag_id': 1255, u'entity_type': u'post'}, {u'quote': u'In my opinion the scalability could be possible only if these new solutions, new approaches became part of an open policy making process.', u'entity_id': 27810, u'annotation_id': 9099, u'tag_id': 1255, u'entity_type': u'comment'}, {u'quote': u"We have a similar system, except no forms. You have a project, you post it as a group on the platform and receive your basic tools for cooperation (wikis, tasks etc.), loosely coupled with what the whole community is doing. This is meant to maximize the chance that somebody you don't know will randomly walk in and turn out to be exactly the person needed for that project. People are encouraged to find their own ay to share, under Who Does The Work Calls The Shots \u2013 doers decide.", u'entity_id': 23095, u'annotation_id': 9122, u'tag_id': 1256, u'entity_type': u'comment'}, {u'quote': u'So how do you set up an environment that allows value creation and its distribution but feels like a network and is build on openness, transparency, decentralized processes?', u'entity_id': 19801, u'annotation_id': 9121, u'tag_id': 1256, u'entity_type': u'comment'}, {u'quote': u'An analogy: Edgeryders is enabled by openness (in both the sense you mention). Openness is a big constraint on how the Edgeryders organisation is built and develops. For example, the need to stay open (and be perceived as such) drove our choice to be a not-for-profit: this choice signals that we are not trying to be extractive in our social contract between company\xa0and\xa0community. Similarly, I expect heavy conditioning of openness on the design of open care services.', u'entity_id': 9933, u'annotation_id': 9103, u'tag_id': 1256, u'entity_type': u'comment'}, {u'quote': u'How and how much the openness of a design and production process influences the openness of service delivery', u'entity_id': 5749, u'annotation_id': 9102, u'tag_id': 1256, u'entity_type': u'post'}, {u'quote': u'the openness in the processes thanks to which enabling systems (i.e the enabling products, services, places, infrastructures) are designed and realized', u'entity_id': 5749, u'annotation_id': 9101, u'tag_id': 1256, u'entity_type': u'post'}, {u'quote': u'The most pressing need now is to set up a patient cooperative for Open Insulin and how to prototype it.And clear out the international collaboration that is now emerging in the open insulin research.\n\nSome history of the project.\n\nEarly 2015 in Counter Culture Labs, biohacker collective in Oakland, developed consensus around the idea that we could make insulin in a lab like their. The idea is worth pursuing, the technology is there. First it was a technical motivation, afterwards it was clear that insulin was a social and economical issue. \n\nMany people don\u2019t have access, it\u2019s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based).\n\nThere\u2019s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production.\n\nScience and engineering:Went through one proof of concept iteration in an E. coli bacteria (for troubleshooting methods). Took about a year. We made a precursor protein to insulin. Bacteria however is not able to convert the precursor into insulin, so since early 2017 we\u2019re looking at yeast, because that organism can do everything inside the organism. The protocol needs to be simple and easily reproduced.\n\n6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production.\n\nTeams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles. \n\nThe organisation needs to ultimately be accountable to diabetes patients. It can\u2019t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don\u2019t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.\n\nMany semi-independent manufacturing efforts that are localised, but sharing knowledge. A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing.\n\nThe FDA is the biggest player in making this a reality. Big part of this is making a rigorous case and showing the costs of illness and the benefits of our alternative. Depending on how their own incentives work, they might not care. \n\nWe have 2 goals, proposal is to split in two groups:\n\n1. How do we move from here to this cooperative?\n\nA cooperative as a platform where patients would be the main stakeholders.The patent is not to stop other people from doing it, but to protect the \n\nCharacteristics of the agreement:\n\nRate of profit determined by patientsWhere it is invested is determined by patients.\n\nExample of medical cannabis cooperatives. Maybe we can use it as a template for our organisation. Tailor this to the local jurisdiction. \n\nWe need some kind of global scale organisation that holds the IP in custody. Perhaps a Swiss foundation. A public benefit corporation.\n\nForging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.Lucas Gonzales. Epidemiologist. His job is to prepare for flu pandemics in the canary islands. As part of preparing the plan, he found out there\u2019s 8000\u2019s diabetics in the CI and there is no capacity on the island (comes from Germany). So in case of pandemic, they are screwed. This could be an angle.\n\nSynthetic pancreas people. Firewall of FDA and then they appealed to free speech. They don\u2019t sell, yet share the schematics. \n\nMake it look less like a market transaction, and more like a club: participating in the testing. \n\nAnalogy to Open Source Ecology. Centralized body of knowledge, localized operation to build machines by doing workshops etc. \n\n\nChris Cook:\nAt the global level: memorandum of understanding, but otherwise you\u2019re free to do what you want.\n\n\nUnincorporated association:Agreement, but not in any legal form. 2 pager. For very early stage funding. Like a club. People have an account in the name of the club. This could be global from day 1, with members. It has a \u2018hatching clause\u2019 which makes it hatch into an actual legal form. \n\nAction items:\n\n\nReview relevant structures\nPitch this to city governments (Milan next month, Oakland, Ghent)\nHave a legal structure, so that funders know where their money goes\nCali cooperative weed\nCooperatives in calif and europe (Switzerland? Winnie\u2019s contact Malcolm Bain? European Cooperative Association)\nCentralized holder of IP\n\n\nReview the agreement of Chris.\n\nHave an inside trusted partner when you pitch this, so that\u2019s it\u2019s not 50 50 in they liked it not. Clear action plan with timelines. Open to input. Jump in early for a premium. Weigh the pro\u2019s and con\u2019s of premium. Winnie can talk about it with the head of strategy for the City of Ghent.\n\nIn Oakland: never got to the head, always mid or low level managers. You need to get people in power to not necessarily endorse it, but mainly not stop it. An endorsement would really help though. A paragraph and collect signatures of \u2018innovation, super cool project\u2019. \n\n2. How do we do international collaboration?\n\n\nWinnie:\n\nPeople are disgusted by how biotechnology industry works. Morally it\u2019s not okay that people are taxed so much money. We started a collaboration in March between Oakland, Ghent, and Sidney. It was hard to get access to information - where are the best practices documented. The team in Oakland was spread thin, so this makes it hard to scale internationally. Coincidentally it became good to collaborate, but no investment to find sinergies, for example split the experiments between groups.\nWe\u2019ve been in touch online only, and visiting helped a lot to develop trust, despite calling on skype every 2 weeks.\nTwo key problems:\n\nDocumentation and\nTrust\n\n\n\n\n\nGaby:\nIs it a problem of infrastructure - better tools, better software, or about changing the culture?\n\n\nWinnie:\n\nIt\u2019s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it\u2019s going to be very bumpy.\nNo platform for documentation yet.We should have a method of getting everyone on board, in difft timezones and geographical points?\nThomas: What is the patients\u2019 perception?In Belgium, the insulin is covered by the government, so not many incentives to participate among that group. The motivation here is the biotech industry.\n\n\n\n\nCindys:\n\nBuild on an existing community that has thousands of people in it, and not take on the burden of building a new platform.The Public Lab community - good for discussion and file sharing, and replicability.\nAttend the barnraising and do a workshop there? \n\n\n\n\nMatteo:\nReplicability across countries: there is a lack of culture of open science and a knowledge gap in biology.A transnational cooperative system funded by a big donor which fosters development in underdev countries? The path from need to solution is longer there - building trust, community building takes more time.\n\n\nWinnie:\nIdeally find a big donor but with niche interest locally/ in a region. The community coordination and interface needs to be funded too - i.e. the Oakland team is more focused on the research itself.\n\n\n\nCindys:\nPublic Lab has developed frameworks to use - to create a context and make sure it feeds back and then it is championed, took forward by the organisation.\n\n\n\nGaby:\n\nLearning to do science by sharing information, many times tacit. But you either have to think of the role of the person making this, or have an incentive - a place where we give recognition where people actually see it and appreciate the value.\nGroups back together\nA platform cooperative as a club insulin: the insulin users and platform service provider (management, quality control). A global framework in which local production can put its roots in local jurisdiction. The overarching club, anyone can join and it doesn\u2019t own anything.\n\n\n\n\nCindys:\nThree issues discussed - platform documentation, trust, building the network\n\n\nThomas:\nInterested in local production, is in a process of launching a High Institute of Open (?) Science. He\u2019s going back to Cameroon, it would be an opportunity to test open insulin there. \n\n\n\nGaby:\nSharing information', u'entity_id': 38856, u'annotation_id': 11860, u'tag_id': 1920, u'entity_type': u'post'}, {u'quote': u'I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.', u'entity_id': 37593, u'annotation_id': 11825, u'tag_id': 1920, u'entity_type': u'comment'}, {u'quote': u'The government support I am talking about here is : policies to frame community-science action ; encourage the broad adoption of these local initiatives inside the country. Only official communiqu\xe9 can change the life of many people. Then funding can be useful\u2026', u'entity_id': 37591, u'annotation_id': 11811, u'tag_id': 1920, u'entity_type': u'comment'}, {u'quote': u'Definitely, I am interested to see how science shop in African context can be helpful: to hear about the need, to shape the policy, and to advocate.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentpolicy\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 37262, u'annotation_id': 11800, u'tag_id': 1920, u'entity_type': u'comment'}, {u'quote': u'I am Thomas Herv\xe9 Mboa Nkoudou from Cameroon. My background is in biochemistry and used to be a biology teacher for secondary school. Currently I am a researcher in the field of Open science with a focus on the maker movement and biohacking in the African context. I am also the President of the Association for the Promotion of Open Science in Haiti and Africa (APSOHA).', u'entity_id': 37182, u'annotation_id': 11766, u'tag_id': 1920, u'entity_type': u'post'}, {u'quote': u"What I make of this is that it's not about choosing between the open source or current proprietary\xa0code/technology approach. It's clear to me that both do things well and other things wrong\xa0and that an ideal situation lies somewhere in between.\n\nI find it\xa0is recurring when the open tech/science ideas meet\xa0traditional ideas that the discussion is seldom held around the question: how can the different approaches\xa0learn from each other, in order to implement a better solution?\xa0Rather, it is usually about what approach is the best as is.\xa0Result:\xa0boring discussion and no real progress.\n\nHow can we get to a situation where this conversation is not about an ideal solution, but about\xa0finding an ideal solution?\n\nPing @Alberto\n\n@Eireann_Leverett\n\n@trythis", u'entity_id': 27802, u'annotation_id': 12955, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'A Do-It-Yourself Revolution in Diabetes Care\n\nParents of children with diabetes have led an egalitarian push for improved technology to monitor the condition, and to even develop cheaper insulin.\n\n  \n  \n    \n    \n  \n  \n\n\n\nThis is pretty amazing: an entire open source\xa0ecosystem, from sensors to apps to insulin, emerging from patients.\xa0\n\nWhere do we want to store all this stuff?', u'entity_id': 5392, u'annotation_id': 12954, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u"There's something here too that is shared between citizen science and open source software. It is that it is quite easy in principle to involve ordinary people in ordinary situations, without great amounts of expensive technology or large organisations.", u'entity_id': 38977, u'annotation_id': 11729, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u"5. FAQ\n\nYou're working open source, where's the data?\n\nIt is not currently openly available (see the discussion\xa0below).", u'entity_id': 6412, u'annotation_id': 9159, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u"On your point 2: the goal is an open source production protocol, mainly for economical reasons.\xa0Though those reasons are 'how one will use the protocol'. We can all agree on the protocol as a goal, what happens with it afterwards is up to the user. In this stage, it is desirable that the way we get there does not jeopardize\xa0the use some of the team members have in mind (or at least minimally).", u'entity_id': 12977, u'annotation_id': 9158, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data,\xa0thanks\xa0to their size. Smaller companies can't do much with the\xa0data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be\xa0closer to a transaction (a gift, even).", u'entity_id': 11937, u'annotation_id': 9157, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'Sara: \u201cThere is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.\u201d', u'entity_id': 861, u'annotation_id': 9156, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 9155, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u"It's a great vision. Personally, I see a direct analogy with knowledge of using open source software. If we were to arrange ourselves into levels of knowledge, with one person at each level looking after a few at the level below, then all questions could be answered without the experts being overburdened. Why not the same with health? Well, the danger is undiagnosed serious conditions, and that has to be factored in somehow. But apart from that, it's what we do anyway in a small way. If there is something the matter, we start by asking maybe an older family member, then if that person is not sure, we can ask a nurse, then a general practitioner, then a specialist....", u'entity_id': 21640, u'annotation_id': 9154, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'During my years at the University, where I studied biotechnology, my curiosity was fed by great Professors during the day and by biohackers geeks on the internet during the night.\nMy first attempt to create a biohacker space dates at my freshman year, as you can imagine the excitement of my colleagues vanished due to the pressure of our studies and the difficulty of the journey.\nThe problem wasn\u2019t related to the goodness of the project, both other colleagues and professors seemed thrilled by the idea of having an open source lab for biotechnology. What stopped the initiative was the lack of support and guidance from existing organizations incapable of grasping and helping to fund new ideas.', u'entity_id': 829, u'annotation_id': 9153, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'The first area of interest is care-related and it focuses on creating assistive technologies for people with disabilities, and on offering them for free (and under open source licences). Among these are games for blind children, which have been developed in collaboration with schools for the blind - they helped us design them, tested and now use them. The process allowed us to bring together blind and non-blind people to work together. These games have more than 3,500 downloads from all around the world, got much media attention - and we constantly get positive feedback from people using them. So we continue developing more games for the bind.', u'entity_id': 528, u'annotation_id': 9152, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'The\xa0opencare Maker in Residence is the first edition of a special residency programme that provides support, assistance, resources and acceleration to Makers - from all over the world - who are interested in developing / validating / iterating an open source project in the health and care field. Makers can live and work on-site at WeMake\xa0for a period of time that may vary from\xa0minimum\xa02 to maximum 8 weeks, providing an opportunity for intense collaboration, creativity, and learning to improve their project', u'entity_id': 6206, u'annotation_id': 9151, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u"Open source game apps as solutions to respiratory\xa0diseases!\nEfforts to open up software eg pacemakers for heart conditions\xa0to enable increased security by the logic of: more access -> more resilience and better quality. It would be very appreciated\xa0if you could jump in and tell us\xa0how you cover the regulatory issues so that\xa0your product can\xa0actually be used. For example, what part of your code will you certify and does the fact that it's opensource make it more reliable or not for its future uses?", u'entity_id': 7382, u'annotation_id': 9150, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'This idea emerged as a combination of our passion for open technology and community engagement. Using technologies that have existed since the 70s,with a bit of tweaking, are cheap and perfectly functional to make this idea come true. We then give access to these tools and knowledge to anyone interested, and to encourage them to try new things out.\nThis is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles. It will be cheaper than any of the fancy machines you can find on the market. There already are some ultraportable ultrasound scanners out there, but they cost several thousand Euros \xa0our goal is to divide the price by 10-15 times. This device will be able to produce a medical image that you can then transport to your smartphone or laptop. It\u2019s a device that every health care professional will want to carry in their pocket - allowing for faster and more accurate diagnosis orientation, which means faster and better medical care. As a preventive tool, it will reduce the number of patients who need emergency help. It can save the lives of mothers who die in developing countries during their pregnancies. Our tool will also spark more interactions between professionals and patients.', u'entity_id': 732, u'annotation_id': 9149, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Edgeryders is an open source platform that combines online and offline moments to find through other ways than the mainstream solutions for sociatal problems. Mission is to support members to create self-sustaining projects.', u'entity_id': 541, u'annotation_id': 9148, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Solo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!', u'entity_id': 10762, u'annotation_id': 9147, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'project for an opensource laser cutter, called Risha, that operates via mobile phone.\xa0\xa0 I am also working on another project that helps introduce Bedouin women and kids in the mountains to smart textiles, and I am a consultant to the Wikimedia Foundation (the one that runs Wikipedia), working on helping find out what readers want (because no body knows yet, imagine!).\n    \xa0\n  \n   As part of OpenCare team from WeMake, where I am working on both the strategy and the harvesting of the online community and helping the people define projects that they want to implement. Moving on, I will help with physical prototyping aspects.\xa0 I believe Opencare is a wonderful initiative,\xa0 that reminds us of simple solutions that can make a difference in our lives, yet nobody thinks about them, because nobody knows those exists at first place.\xa0 Many thanks to @Costantino for offering me this opportunity.\n   \xa0\n \n  I speak Arabic, English, French and Spanish (proficiency is in the same order :).\xa0 I am Egyptian, and these days I live between Alexandria and Dahab (a small city in Sinai)\n  \xa0\n\nNice to meet you everyone, please let me know if you have any questions.', u'entity_id': 5524, u'annotation_id': 9146, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 9145, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Is it open source? Can I deploy my own?\nAll our software is open source. You can certainly deploy our tools yourself, especially our DIY toolkit. All of our code is available online at Github.', u'entity_id': 564, u'annotation_id': 9144, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'The project is not yet open-source, we are indeed brainstorming on the type of licenses under which to release it.\xa0This will definitely affect the way it is going to be constructed/built/distributed, so unfortunately we have no answers yet on this regard.\nWe have not run any complete clinical assessment but we are planning to start some pilot studies on single users in the near future in order to assess the usability and functionality of the device.', u'entity_id': 17989, u'annotation_id': 9143, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'Open Insulin is one of many projects at Counter Culture Labs, a biohacker space in Oakland, CA. Counter Culture Labs was founded around 2011-2012 by a group of hackers with diverse backgrounds and interests. Members joined us from Sudo Room, another hacker space in Oakland, and Biocurious, a biohacker space in Sunnyvale. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Eventually, the community we built in the hacker space reached a critical mass of knowledge and interest around the idea of starting to producing insulin with a manual protocol, but one designed to be simpler and less expensive than existing methods. We named the project \u201cOpen Insulin\u201d to reflect a commitment to make the results freely available to any interested party and publish our methods openly. The name was a deliberate reference to open source software.\nOpen source, as many readers may know from the software world, is the practice of making all information necessary to produce and modify a product publicly available along with the product itself. It started in software as an alternative to the practice of providing only machine-readable copies of programs, which can\u2019t be understood or practically changed by users of the software. Without access to human-readable code, users and other stakeholders were shut out of their own tools. Open source methods of production are relevant not just to aligning incentives and improving the economics of software development, but also to scientific reproducibility and transparency, and in both software and science, open source can enable more participation and progress than trying to hold secrets close. In medicine in general, and diabetes treatments in particular, I think it holds one of the keys to breaking through the barrier between promising research and a stagnant market of treatments available to patients, just as it made software much more efficient to produce and use and enabled a great deal more innovation than was otherwise possible.', u'entity_id': 552, u'annotation_id': 9142, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Where:\nBarcelona, Spain\nWhen:\xa02014\nWho:\xa0Mauricio Cordova\nFew lines description:\n\n\nIs it a device / software / service\n \n\nFairCap is a device produced with open source technologies.\n\xa0\n\n\nType of community involved (elders, deaf/blind/autism\u2026 disability, etc)\n \n\nThe project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don\u2019t have access to drinkable water and therefore are characterized by premature deaths due to this reason.\n\xa0\n\n\nHow big is the community involved\n \n\nWhat is the solution proposed\n\n \n How is the project currently affecting users\u2019 life?\n  \n\n\n\nFairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users\u2019s life.\n\xa0\n\n\nIs the project developed or still in the development phase?\n \n\nThe project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$.\n\n\nAre there similar projects or attempts to solve the same problem?\n \n\nThere are several: SolarBag \xae (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)\n\xa0\nWhy:\n\n\nHow is it open?\n\n \n What kind of license did they use to publish it? (links to documentation/repo are welcome)\n  \n\n\n\nFairCup is completely open source, available to download and released under Creative Commons licence.\n\n\n\n \n Can you clone/fork it?\n  \n\n\n\nYes\n\n\n\n \n Is it freely available?\n  \n\n\n\nThe source files are downloadable for free\n\n\n\n \n Is it affordable? (please compare)\n  \n\n\n\nThe estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters.\n\n\n\n \n Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?)\n  \n\n\n\nThe founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.\n\xa0\n\n\nHow does it \u201ccare\u201d?\n\n \n Does it solve a medical issue?\n  \n \n Does it solve a social issue?\n  \n \n Does it solve an everyday issue for a specific (disadvantaged) community? \n  \n\n\n\nYes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.\n\xa0\nLink: http://faircap.org/\nhttp://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/', u'entity_id': 33728, u'annotation_id': 9141, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months.\n@Rune\nI think we have some miscommunication here. I\'m not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has \'similar\' issues to the issues of open source.\nOn your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by \xa0P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don\'t believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper "Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis.\nThere are many more things we might discuss about regulation, such as the FDA\'s limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM\nBy making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I\'m not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I\'m happy to provide more reading and evidence, when time permits.', u'entity_id': 26028, u'annotation_id': 9140, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'I can\'t really answer your question "Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals?" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms.\nAs for " Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer\'s names? Not sure, but couldn\'t you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product?\nOf course I agree that such probing questions need to be asked, and you can\'t expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome.\nHowever, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term.\nLastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto\'s comment.', u'entity_id': 21955, u'annotation_id': 9139, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.", u'entity_id': 21205, u'annotation_id': 9138, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels.', u'entity_id': 19731, u'annotation_id': 9137, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'Where:\nHungary\nWhen:\n2013\n\xa0\nWho:\nR\xf3bert Csord\xe1s, Gergely Jo\xf3s, Tibor Szab\xf3\n\xa0\nAbout:\nMobilECG is an opensource clinical ECG. It is designed to record with 2 to 10 wires for up to 5 days. The device can be connected to a mobile device wirelessly.', u'entity_id': 762, u'annotation_id': 9136, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Hello everyone,\xa0 as Wemake we would like to share more research around existing products that align with the concept of care.\xa0\xa0 This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.\xa0 Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.\xa0 The posts to follow will elaborate on different technologies applied in open projects around the theme of care.\n\xa0\nMaestro\nAbout:\xa0 Making your own finger mounted input device to control the cursor.\nCountry: USA\nYear: 2015\nBy: Jonggi Hong - student of the course \u201cTangible Interactive Computing\u201d taken by Professor Jon Froehlich at the University of Maryland, College Park. \n\xa0\nIt is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course "Tangible Interactive Computing" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers.\nHow is it open?\n\n\nMaestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic).\n \n\nAnyone can clone and fork it.\n \n\nSource code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though: \n \n\n\xa0\n\xa0BOM\n\n\nArduino Pro Mini https://www.sparkfun.com/products/11113\n \n\n9DOF IMU sensor stick https://www.sparkfun.com/products/10724\n \n\nCopper tape (or any other small conductive material) \n \n\n3 resistors (1~10 mega ohm, big resistance is better) \n \n\nWires, tape \n \n\n3D printer\n \n\nLink: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/\nhttps://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es', u'entity_id': 512, u'annotation_id': 9135, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'open source communities, that harness collective intelligence to find new solutions to old problems;\nnetworked organisations, notably Buurtzorg, the community care provider in the Netherlands, that combine the benefits of being small with the benefits of being part of something large.\ntraditional community-based approaches to care-giving that are human-centred and sustainable.', u'entity_id': 758, u'annotation_id': 9134, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users\u2019 houses (services?), all these are open questions that we will be working on for the next phase.', u'entity_id': 806, u'annotation_id': 9133, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.\nOpen Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.\nCounter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now.\nAbout a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.\nThe general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.\nRight now we\u2019re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can\u2019t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers.\nProvided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.\nUltimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body\u2019s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet.\nAt the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we\u2019re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we\u2019re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow.\nMeanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it\u2019s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek.\nDo you have any projects in health, medicine, or biohacking that you\u2019d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you\u2019d like to get involved with? Leave a comment and let us know.', u'entity_id': 523, u'annotation_id': 9132, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'. It\u2019s a open source (meaning that all details of how to replicate are publically available) device for strengthening the hand, using FES (mecfes.wikispaces.com).', u'entity_id': 720, u'annotation_id': 9131, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'There is a growing recognition about the negative effects stemming from commodifying innovation through restrictive I.P. protection and exclusivity, especially in the medical field. Open Source Development methodologies in software emerged as the dominant form of collaborative innovation in the late 90\u2019s and the trend has been spreading to a wider sphere of work. The IT infrastructure of today\u2019s world enables peers to connect, share and collaborate on solving common issues through use of collective knowledge. Commons-based peer production is the term that defines such collaborative efforts by peers. The collaborators act as the stewards of commonly held wealth and assets which could be anything ; monies, knowledge, equipment, reputations, social capital etc.The beauty of such networks is that development for one project can be mixed and remixed to suit a variety of other needs. Traditionally, such endeavors have been part of a gift-economy where peers do not seek tangible rewards for their contributions. However, for larger scale and mainstream economic model, gift economy is not a viable method for development. The question, then, is how do we keep track of contributions to inform fair rewards?', u'entity_id': 538, u'annotation_id': 9130, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 9129, u'tag_id': 1257, u'entity_type': u'comment'}, {u'quote': u'Inspired by open-source software models, Sage Bionetworks co-founder Stephen Friend builds tools that facilitate research sharing on a massive and revolutionary scale:\xa0https://www.ted.com/talks/stephen_friend_the_hunt_for_unexpected_genetic_heroes', u'entity_id': 5491, u'annotation_id': 9124, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'The second free hands-on workshop of the #opencare series will take place this next Thursday 7 april\xa0in Milan at \u20185 Forum delle politiche sociali\u2019. Come and learn how to create an #IoT #opensource service to monitor and take care of your loved ones remotely.', u'entity_id': 5518, u'annotation_id': 9123, u'tag_id': 1257, u'entity_type': u'post'}, {u'quote': u'OpenStreetMap', u'entity_id': 34567, u'annotation_id': 12292, u'tag_id': 2503, u'entity_type': u'comment'}, {u'quote': u'ow do keep it from becoming an isolated, if enviable situation, which is not merely its own ends?', u'entity_id': 21004, u'annotation_id': 9161, u'tag_id': 1258, u'entity_type': u'comment'}, {u'quote': u"This was exactly the kind of situation that sociological literature likes to call a \u201cgated community\u201d . bu we never felt like that. \xa0we started as a non-group, we have become a light community with different sensibilities and priorities, we've engaged with the neighborhood in several ways, we took part in local decision making, social action, and so on\u2026", u'entity_id': 743, u'annotation_id': 9160, u'tag_id': 1258, u'entity_type': u'post'}, {u'quote': u'* What kind\xa0of\xa0opportunities\xa0exist\xa0being\xa0in their specific situation?', u'entity_id': 16990, u'annotation_id': 9188, u'tag_id': 1263, u'entity_type': u'comment'}, {u'quote': u'The optimization part is something that we could work on\xa0here in Belgium. Federico is based in China/Amsterdam, so he is around close enough to help us get started and betatest his chip. This would give a new dimension to replicating the work previously done by CCL, if we could test culturing the bacteria on the chips. If it works, it would even be pretty valuable step towards opening up biotech research in general.', u'entity_id': 6291, u'annotation_id': 9189, u'tag_id': 1264, u'entity_type': u'post'}, {u'quote': u"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!", u'entity_id': 859, u'annotation_id': 9191, u'tag_id': 1265, u'entity_type': u'post'}, {u'quote': u'We need sessions on the same question across the different themes: Funding in diy projects separately from Funding in policy etc doesn\u2019t make sense! We should get a post up on the forum for that, and combine with another call.', u'entity_id': 6435, u'annotation_id': 9190, u'tag_id': 1265, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 9193, u'tag_id': 1266, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 9195, u'tag_id': 1268, u'entity_type': u'post'}, {u'quote': u'My own questions about making a life for oneself lingered. It seemed that the deep personal investment of people is not only in making a project happen. Someone I spoke to framed it as having a chance to live the lives we want, outside the oppression experienced in the city. Wir Bauen Zukunft and their extended loving arms like Open State are building future, in much needed radical, but gentle ways. Chapeau!', u'entity_id': 36387, u'annotation_id': 11710, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'Podcast Description: "This way of life is a war against our bodies. The air polluting our lungs, our breast milk filled with toxins, and our mental angst driving us to suicide. Proposed health cuts increase our general precarity in relation to a failing health system, a health system that fundamentally furthers our objectification and dependency on capital. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy. We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. From the Greek solidarity clinics to the Zapatistas \u201chealthcare from below\u201d to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. We begin by finding each other. This podcast will be a step in that journey."', u'entity_id': 35814, u'annotation_id': 11589, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.', u'entity_id': 6376, u'annotation_id': 9226, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 9225, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u"We'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a \xa0prospect,\xa0I doubt there would be enough that's novel about our work to qualify it as fundable science.", u'entity_id': 26033, u'annotation_id': 9224, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u"@Noemi, @Alberto at the first glance it looks cool, but am i the only one that\xa0 get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)?\n\nIf I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and\xa0 3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based\xa0 research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?", u'entity_id': 23568, u'annotation_id': 9223, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u"Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that's natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn't serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic?", u'entity_id': 846, u'annotation_id': 9222, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'There is also the ambition to create a health care system within the communities by implementing the same solutions and building autonomous, community managed and driven scheme, highly independent from the existing one. For example, it could be done by using the percentage of community\u2019s income to fund health care. It could even in the future take shape of an autonomous security system. Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine. And all the wealth that is sucked up from the communities will stay there, making them stronger and independent. It is already the case in Spain, where after 6 years of experiments in the communities of all kinds a lot of generated income has been fed back and used to build, support projects, create systems of all kinds.', u'entity_id': 741, u'annotation_id': 9221, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u're: my observation above. I was just listening to one of my favourite podcasts Invisibilia, and their latest episode talks about mental health patients and alternatives to\xa0failing recovery systems all over the world. Like some here already intuit, meaningful help can come from\xa0supportive community environments (interesting examples from a\xa0town in Belgium called Geel where families host "patients" for decades!, or\xa0housing sites in NYC with 40% mentally ill people living among the others).', u'entity_id': 13011, u'annotation_id': 9220, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'In taking over responsibilities in issues that affect the whole society - refugees, climate change, social and ecological justice, to name just a few - community-based and grassroots initiatives play an increasing role in tackling these challenges and their effects on the local level. They are breeding grounds for social innovations and new bottom-up-strategies. Often people take initiative when traditional or institutional forms of care and support decline or do not meet people\u2019s needs. Community gardens and urban agriculture- the field in which I am personally engaged- can serve as a good example. Without being part of planning, or political programs, these places are mostly created by local, self-organized initiatives. Based on local engagement and alternative forms of economy and often without public or financial support, community gardens contribute to the well-being, social inclusion, healthy and sustainable lifestyles, biodiversity, the physical- as well as the social climate. Not only they contribute to the physical health of their participants, but also to their sense of dignity and self-esteem.', u'entity_id': 507, u'annotation_id': 9219, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'Many learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels.', u'entity_id': 19731, u'annotation_id': 9218, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'Putting ourselves outside the system\nIn the first six months, I was convinced we could create a complete system without the need of money. Only through exchange we could rebuild the house. This gave us a clear barrier to work around, and even if after six months we partially let money in our system, we were trained to think about solutions without money by using the skills, knowledge and resources of one another. This is one of the many ways we try to build challenges to ourselves to constantly think out of the box. When crisis occurs, we need to think and find solutions fast. Creating these exercises in a calm period will help create resilience in all members.', u'entity_id': 520, u'annotation_id': 9217, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'Hellenic Network for Agroecology, Food Sovereignty and Access to Land\nSince the crisis begun, it is becoming increasingly difficult to do anything in a formal, legal way. This is one of the main reasons why most groups here operate under the radar -which on the other hand is not necessarily a bad thing. But this means that growth comes in relatively slow steps and is hindered by the lack of access to funds and other resources. For example, setting up an NGO costs around \u20ac1000 and has an annual \u20ac1000 \u2018trade tax\u2019 (literally a levy to allow you to do business) -this applies to social enterprises too. And although this is not as bad as having to prepay 100% of next year\u2019s taxation like with most small businesses (or 50% for farmers) it still might pose a problem for people who want to do exactly that: do something without business profit in mind.', u'entity_id': 560, u'annotation_id': 9216, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u"And there is an additional hurdle to overcome; I am using an unfamiliar medical paradigm and technique that people do not necessarily have trust in [at first] - and I am doing so outside of the usual recognised channels of 'medical authority'.", u'entity_id': 18817, u'annotation_id': 9215, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u"But a couple of days ago a kind of epiphany came accross. In fact like what edgeryders does on care, we can create locally on any topic, creating an easy swarm of projects that can become a lever to not wait till policy is written, but to shape what it is going to be without having to play the political game. We are going to do this exercice with the Brussels makers scene through the FabCity platform of Barcelona. Bringing projects towards organisations and spaces and coordinating these spaces to communicate as one about their needs towards politics. In such way that we don't have the proposal from politics: let's just build 170 fablabs for 2020, but that through the swarm of knowledge know what are really the necesities.", u'entity_id': 29073, u'annotation_id': 9214, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u"The\xa0ideal of May '68 has become ingrained in the way the mainstream thinks.\xa0The loss of faith in government and institutions has become part of a normal way of thinking. Management and corporations have adopted it in a way: they want to get\xa0rid of the old and slow processes, they want radical disruption asap\xa0and would like as few interventions by government\xa0as possible. Government is mainly seen as an obstacle at this point.", u'entity_id': 20946, u'annotation_id': 9213, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'Audio tests have also shown that the Glia stethoscope was on par with the leading model on the market, the Littmann Cardiology III."', u'entity_id': 10361, u'annotation_id': 9212, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'"Tired of waiting for a monitor for his diabetes, Tim\xa0Omer made his own. He\xa0is one of a growing number of patients circumventing medical companies in favour of a homemade healthcare revolution"', u'entity_id': 4909, u'annotation_id': 9211, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'We are beginning to experiment with providing care outside of the realm of state control. This practice may involve working outside the structure of licenses, certifications and insurance. Our intention is always to heal, and so we are finding ways to do this that protects providers and patients.', u'entity_id': 5886, u'annotation_id': 9210, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 12845, u'annotation_id': 9209, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'There are many points already being made in OpenCare about circumventing existing system regulations. Aside those you link to there is:', u'entity_id': 13940, u'annotation_id': 9208, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'To my understanding of OpenCare, then this is the very essence. Breaking out of \u2018failed institutions\u2019 https://edgeryders.eu/en/escaping-failed-institutions-through-evasive-entrepreneurship\xa0while staying clear of trouble.', u'entity_id': 5913, u'annotation_id': 9207, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u"I think it's useless to repeat methods from the past. We have to think out of the box and create new ways of reaction. We can use all this survival kit lists just for wring/sift and/or update them. The point is not an endless list that nobody wants to read it but to find ways to train the people through their daily routines. And only a few things should be prepared especially for emergencies.", u'entity_id': 13505, u'annotation_id': 9206, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'At the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to\xa0fail\xa0because they have no social or political capital to diminish, except with the people they work with directly.\xa0This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece.', u'entity_id': 19227, u'annotation_id': 9205, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'balance the desire for a new world with the recognition of the reality of the world we live in', u'entity_id': 29958, u'annotation_id': 9204, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'We do not reject modern methods of medicine, but rather recognize the need to detach the knowledge from the oppressive institutions that guard it.', u'entity_id': 521, u'annotation_id': 9203, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'Because we have relegated health to these institutions, we have lost our ability to heal ourselves.', u'entity_id': 521, u'annotation_id': 9202, u'tag_id': 1269, u'entity_type': u'post'}, {u'quote': u'This initiative is not intended as research, not intended as competing with hospital regulations.', u'entity_id': 21631, u'annotation_id': 9201, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'Why: Because it will fill a need that the healthsector is not meeting. Personalized, responsible selfcare and building a DIRECT bridge between healthcare professionals/researchers and users.', u'entity_id': 12142, u'annotation_id': 9200, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u"As for Medecins sans fronti\xe8res, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,\xa0 are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.", u'entity_id': 23874, u'annotation_id': 9198, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'On the other hand, I was certainly struck by the degree to which stepping outside the commercial model of delivery freed me up to do things differently.', u'entity_id': 18202, u'annotation_id': 9197, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'Maybe involving people who are not health professionals in the system definition is a requisite for the kind of services you mention - precisely because the ones from the system are too trapped in it to get out alone.', u'entity_id': 18017, u'annotation_id': 9196, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 39337, u'annotation_id': 11651, u'tag_id': 1269, u'entity_type': u'comment'}, {u'quote': u"i @Lucy , welcome on the platform!\nFor this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together.\nWe should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?", u'entity_id': 20342, u'annotation_id': 9231, u'tag_id': 1270, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 775, u'annotation_id': 9230, u'tag_id': 1270, u'entity_type': u'post'}, {u'quote': u'The value for me lies in the intersection of these fields or knowledge bodies. and the relationships and collaborations forged. I am truly excited by this potentiality that remains on the fringes of studies and projects.', u'entity_id': 33824, u'annotation_id': 9229, u'tag_id': 1270, u'entity_type': u'comment'}, {u'quote': u'With great interest I read your story. I absolutely agree that a beautiful collaboration between biomedical professionals/scientists, community members and artists is possible and necessary. Stimulating the dialogue between all these different actors sounds like a challenging, but important and rewarding task. At the moment I am trying to build bridges between the academic world and the larger audience, via video and photography. More specifically, trying to portrait the people behind the scientific numbers in a creative and\xa0emotionally touching way.', u'entity_id': 33814, u'annotation_id': 9228, u'tag_id': 1270, u'entity_type': u'comment'}, {u'quote': u"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory,\xa0collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.", u'entity_id': 33730, u'annotation_id': 9227, u'tag_id': 1270, u'entity_type': u'post'}, {u'quote': u'After the first submission, our original project "doc.doc" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually\xa0turned out the early project in ResQ!\n\nIn particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as\xa0emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.\n\n\xa0Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it!\n\n\n\n\n\tOur project in a tweet\n\n\n\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.\n\n\n\n\n\tProblem that our project\xa0is willing to solve\n\n\n\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.\n\nThe current way of working shows the following problems:\n\n\n\n\n\tThe language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.\n\n\n\tThe missing digitalization of the gathered health data and the consequent discontinuity of the healing process.\n\n\n\tThe limited precision of the anamnestic research due to the high number of patients and the short time available.\n\n\n\n\n\tFinal User, individuals and\xa0community target\n\n\n\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.\n\n\xa0https://www.youtube.com/embed/MZSMi316E-Y\n\n\n\n\n\tSolution, brief description of the project\n\n\n\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.\n\n\nResQ-board.jpg2045x2500 640 KB\n\n\n\n\n\n\tTechnologies we will adopt\n\n\n\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.', u'entity_id': 866, u'annotation_id': 12960, u'tag_id': 2145, u'entity_type': u'post'}, {u'quote': u'o @evelina , welcome from me too. Spoken word for cultural integration\xa0sounds like a new approach\xa0to me, at least in continental Europe. Maybe there is soimething in English-speaking countries, where spoken word as an art form is more widespread.I recall @Alex_Levene is into poetry and spoken word, and so is @Dougald . Maybe they know?\n\nHave you tried it yet? Even on a small scale? If so, how did it go? And: was there a language barrier to negotiate?', u'entity_id': 33795, u'annotation_id': 12959, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'The physical nature of the practices can help overcome language difficulties, which might be useful in a scenario like Calais.', u'entity_id': 13679, u'annotation_id': 12958, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'Longer term residents who are more settled in the camp and are looked at as community leaders do a lot more than i am aware of, but in order to find out more about what they were doing to support each other it would be really benefitial to have a few translators who could have more detailled conversations with them.', u'entity_id': 39334, u'annotation_id': 11661, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'The language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.', u'entity_id': 33817, u'annotation_id': 9242, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u"2 Such a digital system/experience could be way more powerful when there is actually a language barrier and/or the patient itself is in a context s/he doesn't know very well how to swim in.", u'entity_id': 33771, u'annotation_id': 9241, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20209, u'annotation_id': 9240, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 684, u'annotation_id': 9239, u'tag_id': 2145, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7850, u'annotation_id': 9238, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'From what you presented and how funny it seems, I think people can easily take it as an adventure call and that\u2019s nice. But I think you should pay attention so that the purpose of your project is understood: the fact that it\u2019s referring to refugees groups. For example, is the app going to be in German? Or what other languages? Refugees might have difficulties learning German (and not only refugees, newcomers too)\u2026 How is the project evolving, by the way?', u'entity_id': 20130, u'annotation_id': 9237, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific "type" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as "album art" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement "xyz"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.', u'entity_id': 13504, u'annotation_id': 9236, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30484, u'annotation_id': 9235, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30484, u'annotation_id': 9234, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u"She was saying elsewhere, in her own words, that language is key to connect newcomers to the new setting, but also arguing for activities like the ones you propose. Do you manage to break throguh the language barrier, or have people helping with\xa0that? Either way, well done, it seems there's a lot you have going on and quite some activity (checked your live chat, great one\xa0hehe).", u'entity_id': 30442, u'annotation_id': 9233, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u"I'm wondering if people in different places have own preferences to express themselves, or if language can be an obstacle?", u'entity_id': 20332, u'annotation_id': 9232, u'tag_id': 2145, u'entity_type': u'comment'}, {u'quote': u'Questions that patients have don\u2019t always get answered- What can I do to keep my body in the best shape? What food is best to eat during treatment? These are a few of the many questions that require answers. In the standard 15 minute doctor visit it hard to dig deep and get these answers.', u'entity_id': 35903, u'annotation_id': 11592, u'tag_id': 1272, u'entity_type': u'post'}, {u'quote': u"Thanks, @Alberto. Couldn't agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.", u'entity_id': 15329, u'annotation_id': 9244, u'tag_id': 1272, u'entity_type': u'comment'}, {u'quote': u"I don't know what these doctors are actually frustrated with. I guess an inhumane amount of patients to see every day might be one of the reasons. Still, I would suggest there is a huge lack of empathy training during their studies and work, and maybe this is why they're incapable of approaching their patients in a more personal, compassionate manner.", u'entity_id': 12427, u'annotation_id': 9243, u'tag_id': 1272, u'entity_type': u'comment'}, {u'quote': u'A community is like a dish full of food. Food is good, by the question is: who provides the dish? I really would like to know more about this?\n\n\n\nsabgaby:', u'entity_id': 38811, u'annotation_id': 11741, u'tag_id': 1273, u'entity_type': u'post'}, {u'quote': u"Hey @Damiano,\xa0\nI like your questions and experiences with fairbnb. I've also been thinking about this topic and share some ideas and perspectives on\xa0http://creatingnewrealities.co/creating-new-realities/.\xa0\nMy perspective is that there seem to be natural relationships to property and things, even if they are temporal. So I'd like to introduce this element of relationship into the equation for commons. I'm also interested in exploring this topic further and create a software/ community/ commoncreation tool to support the natural relation to our creations and possesions.\xa0\n\nAnother aspect that relates to this is the topic of access of ownership. Which is another way of relating. I'd like to experiment with this in the forms of networks and platforms. Curious how you feel!", u'entity_id': 19865, u'annotation_id': 9247, u'tag_id': 1273, u'entity_type': u'comment'}, {u'quote': u'From our point-of-view at "Makers", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an "automated manufacture pod" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.', u'entity_id': 19837, u'annotation_id': 9246, u'tag_id': 1273, u'entity_type': u'comment'}, {u'quote': u'shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential?', u'entity_id': 846, u'annotation_id': 9245, u'tag_id': 1273, u'entity_type': u'post'}, {u'quote': u"Thanks Natalia and Eireann for reporting on this. I had read Marie's story a while ago on the internet and was impressed by the humility with which she had approached medical security. After all, she rightly stated that the benefits of having the pacemaker far\xa0outweigh the risk - which is why probably many patients are looking away or de-prioritizing this.\nI'm also reminded of @Rune's story where an upgraded\xa0medical care also needs an alliance between\xa0patients/consumers and researchers\xa0(he's arguing for more\xa0system availability for\xa0cheap, effective medical tech).", u'entity_id': 16928, u'annotation_id': 9249, u'tag_id': 1274, u'entity_type': u'comment'}, {u'quote': u"\xc9ireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs\xa0on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann\u2019s years of assessing devices for security holes, they wouldn\u2019t normally be \u201callowed\u201d to investigate the security of such devices.\nThis implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable.\nI suggest you watch this great video from 32C3, where Marie and \xc9ireann tell about their journey.\nObviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it.\nBut that's not all - \xc9ireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is \u201cSafer. Sooner. Together.\u201d\nHe contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\nFinally, \xc9ireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.", u'entity_id': 712, u'annotation_id': 9248, u'tag_id': 1274, u'entity_type': u'post'}, {u'quote': u'Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.\xa0\nIn the software world, we see this a lot. Turns out much software work is "packetizable": the whole is much\xa0more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think\xa0Wikipedia: it is so great because it spans human knowledge, but I can work\xa0on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.\xa0\n@dfko , is making\xa0open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?', u'entity_id': 19322, u'annotation_id': 9250, u'tag_id': 1275, u'entity_type': u'comment'}, {u'quote': u'Despite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they \u201cplay by ear\u201d. Most staff do \u201cwhat feels right\u201d based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come.', u'entity_id': 548, u'annotation_id': 9252, u'tag_id': 1276, u'entity_type': u'post'}, {u'quote': u'The need to understand young people\u2019s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or \u201ccare for the living\u201d. In other words, despite social workers and counsellors preaching the value of \u201ccare chains\u201d, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.', u'entity_id': 548, u'annotation_id': 9251, u'tag_id': 1276, u'entity_type': u'post'}, {u'quote': u'parallel currency to your activity, creating a membership parallel economy, the likes of Sardex?', u'entity_id': 8137, u'annotation_id': 9253, u'tag_id': 1277, u'entity_type': u'comment'}, {u'quote': u"And then I saw that photo. A young woman with her two frightened children hanging onto her arms. Walking to nowhere, barefoot. Beyond endurance, angry but determined to survive the crush. Fearless, though! Imperious! I got angry. I stood beside her, out there in the dust. I'm just one step away from being like her.\nThat moment I realized that there isn\u2019t any Deus ex Machina to save them. To save us.\nSo, I started thinking\u2026 What would I need if I were there? What should I carry to help my children withstand it? What should I bring with me for a little break? ...and their feet! What will happen to their feet? And the sun? It's hard being a parent in peace. In war and in refuge, only a hero.", u'entity_id': 550, u'annotation_id': 9257, u'tag_id': 1279, u'entity_type': u'post'}, {u'quote': u'There are tons of reasons that makes baby cries. Baby might be hungry, sleepy, diaper dirty or more and more. While the baby is crying, mom has to check what the exact problem is, and before mom solves it, the baby won\u2019t stop crying. In this period, mom might feel anxious, stressful or panic that from the crying sound, herself or others. This mental situation might influence mom\u2019s decision making or education for the baby.', u'entity_id': 776, u'annotation_id': 9256, u'tag_id': 1279, u'entity_type': u'post'}, {u'quote': u"Parkinson's, as we all know, is a serious ailment for which there has not been a cure yet. What makes the ailment\xa0even more intimidating is that the symptoms keep varying\xa0from person to person and we never know in what way is going to affect the patient. Wave, as our team is called, is trying to make someone suffering from parkinson's and their caregiver's lives easier using technology that we have today at our disposal.\n\nThe first signs of someone having parkinson's are the motor symptoms. These symptoms include essential tremors in hands and other parts of the body. These symptoms further advance overtime enough that it makes it difficult for them to perform the easiest of daily tasks.\xa0The symptoms occur when the level of dopamine, the chemical responsible for body movement coordination, reduces in the brain. Medication is used to replenish the dopamine levels or fake the action of the dopamine.\n\nWith our prototype, we propose to make the lives of someone with parkinson\u2019s simpler. Our prototype will be wearables that can monitor the motor symptoms of the patient.\xa0Our prototype will monitor the common symptoms like tremor and stiffness in the human body, and if the symptoms are showing an uncommon behaviour, the prototype can beam the information to the smartphone to remind the patient or the caregiver to take the medicines to or to see the neurologist.\n\n\nParkinson&#39;s Sketch.jpg600x1270 104 KB\n\n\nOur goal is to help someone who has recently started showing symptoms of parkinson\u2019s to track their motor symptoms and also prolong the initial stage as much as possible.\n\nA lot of research-based apps and services are available today that help in better understanding the symptoms of Parkinson\u2019s. Apps like mPower and Parkinson\u2019s Central are monitoring the patient\u2019s health from their rdaily movements and tasks along with daily or weekly surveys. With our prototype, we not only propose to help in tracking symptoms to better understand the disease but we also want to help the patient in the best way possible.", u'entity_id': 768, u'annotation_id': 12961, u'tag_id': 1281, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 30612, u'annotation_id': 9264, u'tag_id': 1282, u'entity_type': u'comment'}, {u'quote': u'@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered\xa0 to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it\'s more complicate than it seems. The people want to help but very often the misunderstand\xa0 the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word "crocs" and use the word "clogs" because many people thought I\'m trying to advertise them). Especially for this, a woman from a "...welcome" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn\'t ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it\'s easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it\'s ....hard to explain...', u'entity_id': 11600, u'annotation_id': 9263, u'tag_id': 1282, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22106, u'annotation_id': 9261, u'tag_id': 1282, u'entity_type': u'comment'}, {u'quote': u'@Federico_Monaco you leave us wanting more  Does it happen in workshops with more people, in meetings one-on-one, on the internet as well..?\n\nPS I suggest whenever you blog about WeMake work or OpenRampette you make sure to link to a context post on edgeryders or elsewhere so that when we share your notes on the Internet readers can plug in directly in the conversation - or just explain in 3 introductory sentences what is OpenRampette and what question is poses.', u'entity_id': 14239, u'annotation_id': 12962, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11775, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'In our previous post, we concluded that nobody had really ideated SoundSight all alone\u2026 no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models.\nAt this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product.\nThe first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them.\nThe team worked hectically on Irene\u2019s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.\n\xa0\nLet\u2019s leave it again to Irene\u2019s recollection:\nIrene: \u201cHello Mario[1], we are here again\u2026 this time I promise you will be impressed\u201d\nMario: \u201cHi Irene, it\u2019s a pleasure\u2026 and rest assured, last time I was already impressed, although maybe not as you hoped for\u2026 with my friends we have been laughing a lot about your engineer\u2019s idea of a prototype!\u201d\nIrene: \u201cOh no, Mario\u2026 don\u2019t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things\u201d\nMario: \u201cDon\u2019t worry Irene, I have only told the story to one or two\u2026 hundreds of people\u2026 ahahah!\u201d\nIrene: \u201cDoh! \u2026ok Mario, then to pay you back, today\u2019s text will be extra tough!\u201d\nMario: \u201cI am ready for the challenge!\u201d\n\xa0\nIrene sets up the simulation\n\xa0\nIrene: \u201cOK Mario, it\u2019s ready. I would like to ask you to try the first round without me sharing with you any information\u2026 I want you to focus on your impressions only, tell me how it feels\u201d\nMario: \u201clet\u2019s start\u201d\n\xa0\nThe simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click\n\xa0\nMario: \u201cIndeed there have been a lot of improvements, it is smooth now\u2026 last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click\u2026 are you sure these are simulations?\u201d\nIrene: \u201cYes Mario\u2026 we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks\u2026 we are just not there yet\u2026 you are one of our very early testers, and I cannot thank you enough for that\u201d\nMario: \u201cDon\u2019t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user\u2019s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments\u2026 but I haven\u2019t been able to identify where I was.\u201d\nIrene: \u201cThat\u2019s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them\u2026 you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?\u201d\nMario: \u201cIt\u2019s difficult to tell you more from just this\u2026 maybe we can move to the next exercise?\u201d\nIrene: \u201cYes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks\u2026 try to guess what it would be\u201d\nJust a quick run of the new scenario on the simulator\nMario: \u201chmmm\u2026 the smoothness has improved a lot\u2026 but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?\u201d\nIrene: \u201cI had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral\u2026 now that I have told you, could you confirm it or would you still be doubtful?\u201d\nMario: \u201cLet me try to listen again\u201d\n\xa0\n\u2026the simulator runs again shortly\nMario: \u201cYes Irene, now that I know, it could well be\u2026 I had some doubts, with no context it could have been a theater or a large gym, \u2026\u201d\nIrene: \u201cIndeed\u2026 now I would like you to do a few exercises\u2026 I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features\u2026 later there will be a test\u2026\u201d\nMario: \u201cFor me or for the software?\u201d\nIrene: \u201cFor both, Mario, don\u2019t try to escape your responsibilities\u201d\nMario: \u201cAhahah\u201d\n\xa0\nThey run the training set\nMario: \u201cWell Irene, we will see how I perform later\u2026 but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users\u2026 it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn\u2019t add up\u201d\nIrene: \u201cYou are right. Together with the real-time acquisition of users\u2019 clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface\u2026 or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough\u201d\nMario: \u201cYou would need a lot of needles to offer a useful interface\u2026 you can try prototyping something quick maybe with Arduino\u2026 but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.\u201d\nIrene: \u201cWe will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional\u2026 and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break\u2026\u201d\nMario: \u201cWhat break? Are you not letting me off yet?\u201d\nIrene: \u201cMario, let\u2019s just take the test before the coffee\u2026 I will let you off then, for today\u201d\nMario: \u201cOk, ok\u2026 a no is not possible anyway, isn\u2019t it?\u201d\nIrene: \u201cIt\u2019s always possible, but I will insist with a smile\u201d\nThey run the tests\nIrene: \u201dif we compare today\u2019s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!\u201d\nMario: \u201cBut Irene, how can I be sure if I have truly learned? I mean\u2026 we should arrange tests where there are coupled with some sort of benchmark\u2026 maybe similar tests in real world, you could imagine a mobile lab to do so\u2026 or even just arrange competitions among users\u201d\nIrene: \u201cThat\u2019s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being\u2026 do you think your partner would like to try it out against you?\u201d\nMario: \u201cBut she sees\u2026\u201d\nIrene: \u201cit should not be an advantage, and I promise you I will not show her the screen\u201d\nThis is now a different story\u2026 but after being initially baffled, Mario\u2019s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill.\n1\xa0Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture\u2026', u'entity_id': 578, u'annotation_id': 9317, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Open care is certainly related to the dimensions of access to practices, but also to information not as end-users, but as editors and reviewers. The evening was a good example of viable and inspired assemblage of citizens, institutions, norms and devices for the public.', u'entity_id': 850, u'annotation_id': 9316, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u", it's a pleasure to meet you. You're welcome, these conversations are crucial and must be shared.\nFor starters, reframing the problem in human-centric ways,\xa0technological solutions and its designers could develop\xa0a deeper understanding of the user's lives and their unmet needs. This will\xa0bridge the gap between product (solution) and the user population who would most benefit.\xa0Developing supporting systems that recognize the unique challenges of each patient, that means taking it to the community, and having them create the impact and play a major role.\nFYI part 2 of this conversation forthcoming", u'entity_id': 15427, u'annotation_id': 9315, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'With modern day communication technology sharing through email, social media and Skype it rarely encourages people to share the evolution of their project. We often list, number, bullet point, but seldom do we engage in informal discussions where we share knowledge and reflect. It\u2019s in the reflection that we witness human capital being the driving force behind our projects. It\u2019s worth taking a look at SoundSight, whose story has sparked curiosity in co-creating care solutions. \xa0There are many factors that determine the direction of our projects. For\xa0SoundSight\xa0it has been an ongoing commitment of the human capital to bring forward this project.Experiencing co-creation is a method to bring value to patients in a personalized way with the intention to benefit patients in coping with their health and enhance their quality of life. Looks as though co-creating is the road where the community is defining the destination, planning the journey and sharing the drive. \xa0Let\u2019s hear from Irene\u201d\n\u201cI can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special\u2026 how wrong could I have been!\nLong story short, I had reached out as part of a design thinking exercise, after brainstorming with my colleagues over social and technical literature to find solutions to the challenge of blind people navigation through living environments, \u201csimply\u201d to extract narratives about what we thought their problem to be and, thus, tune our solutions\u2026 We had succeeded obtaining the information we wanted, we had lists of the defeating features of currently existing solutions, descriptions of use cases, but while working on the desired features, something started to emerge for some of us in the team: another narrative had been seeping through our conversations with the blind volunteers, that we did not consider in advance. Most of the blind people we had talked to, despite agreeing to the obstacles imposed by visual impairment, did not consider that a defining condition and were rather cold to any assistive technology they tested or we described. Instead, narratives of empowerment, education, disintermediation, were flowing through most of their replies, even when our conversations were explicitly biased towards solutions\u201d.\nLet this sink for a moment. And remember that the number one challenge of helping another person is falling in love with the solution one wants to offer, losing sight of the\xa0person\xa0in exchange for the\xa0problem.\nSo we asked Irene to recollect her most significant conversation for us:\nIL (Irene Lanza): \u201cGood morning Maria[\xa0I would like to thank you already for your time\u2026 it is truly precious to me to be able to talk with you\u201d\nMBC (Mother of an 11years old blind child): \u201cGood morning Irene. I have heard about you from my friends and fellows from the blind union\u2026 they say you are a very polite and smart girl\u201d\nIL: \u201cAww\u2026 how much will they ask me to pay, now? \u2026haha\u201d\nMBC: \u201chaha\u201d\nIL: \u201cDid they also already tell you about what I would like to talk today?\u201d\nMBC: \u201cvaguely\u2026 apparently, you are working on a new technology to assist blind people in their daily life\u2026?\u201d\nIL: \u201cThat is fairly accurate, but luckily they did not spoil our fun by letting you in too many details. In facts, we are working at the proof-of-concept of a wearable device that could analyze the surroundings in real time and feed information about objects, their velocities, and positions to a visually impaired user, to allow him/her moving naturally through a living environment\u2026 our challenge is to allow a blind person to play a football game competitively against people with normal vision\u2026 well, we would still not provide talent though\u201d\nMBC: \u201cSo, are you thinking of something like those apps on the smartphones?\u201d\nIL: \u201cWell, not really\u2026 we would have dedicated hardware, and we would like to collect your opinions about how to design the user interface\u2026 a smartphone app would be a proof-of-concept compared to the kind of product design we are pursuing\u201d\nMBC: \u201cI don\u2019t like this kind of assistive technology much\u2026 you never know it will let you down. So many factors: the signal may be lost, the battery may go down, the app could crash\u2026 what should I do then?\u201d\nIL: \u201cThis is exactly what I am here to listen to\u2026 you see, we will collect all these opinions, and try to prioritize features in our design concept\u2026 so, have you already tried some of those?\u201d\nMBC: \u201cI am constantly exploring and searching for new tricks and tools that could help Mario, so I often talk about this topic with my friends at the union, and I try some them after reading their reviews or hearing their presentations. Most of them are quite far away from real life, for they are very specialized on single use cases, and they rely on infrastructural investments that in our Country are stagnating for too long already. Mario\u2019s problems extend well beyond walking through an airport or a shopping mall or reading the label on a tomato can. The only tool I really find useful is the reader with vocal synthesis on the smartphone: it works pretty well and it\u2019s so precious to be able to listen to any book when audiobooks are still not the norm\u2026\u201d\nIL: \u201cSo could you tell me more about Mario\u2019s experience? What do you think are the most commonplace barriers he experiences when going to school? How does he roam around?\u201d\nMBC: \u201cHe is training with the stick. Many people dislike it, but it is rather dependable and attracts sufficient attention to ensure that other people will be more cooperative and safely behaved. However everyday life can become very problematic. Architectures are often hiding traps that would surprise for the naivety of those who designed the spaces: you would never imagine the feeling of dread when you have just seen your son missing an unprotected element from a window, protruding out of a wall with its sharp corners\u2026 and the use of the spaces themselves can be even more challenging! Hanging wires, doors opening directly on stairs, elements built in non-shock-resistant glass. Many of these, if you ask me, would be dangerous to any child, but if you factor in the inability to forecast what you are going to meet next\u2026 The risk of bad practices escalates quickly!\u201d\nIL: \u201cSo school is not a safe haven for Mario\u2026?\u201d\nMBC: \u201cNot just that\u2026 most activities are not structured to include children like Mario. Schoolbooks are more difficult to find as eBooks for the vocal synthesizer than others. Even then, many graphics, whether didactic or there for testing purposes, remain inaccessible\u2026 and even the teachers, despite being adorable with Mario, are not informed about methods for inclusive teaching\u2026 For example, my husband is a musician, and he has always tried to exploit musical theory to organize our family games (she mocks for me a couple of games based on recognizing the tones, or what an object at home could be based on analogies of noises). We constantly try to use acoustics as a tool to explain concepts, and risks to our child\u2026\u201d\nIL: \u201c\u2026and this, of course, doesn\u2019t happen at school\u201d\nMBC: \u201cNot even closely. School sometimes becomes a very frustrating experience\u2026 a place of isolation to remind Mario of his diversity. Irene, you are young, you must remember your lectures of geometry, for example\u2026\u201d\nIL: \u201cyes, indeed\u2026 mostly graphics are drawn on the blackboard\u2026 I see what you mean\u201d\nMBC: \u201ceven our language is geared for the idea that\xa0seeing is believing. Mario often tells me that he has seen a schoolmate with a certain outfit or some event that he is going to tell me about\u2026 he does enormously to find his place in society. And my husband and I do our maximum to help him surpass the social barriers: we teach him games that he can play with his friends, we accompany him to familiarize with the places where he will have to interact with his mates, and we drill into him, constantly, how to react to the unexpected, hoping that panic will never prevail. Technology, instead of these half-baked attempts at substituting vision for simple tasks, should take on education\u2026 there is so much more that is lost in our societies when one cannot see than just reading on a can whether it is tomato or green peas, and nurturing those skills that we all have as fellow humans, rather than focusing on what we lack, would be so much more empowering.\u201d\nIL: \u201cwhat you say is very inspirational\u2026 so you believe education is the true mean of supporting Mario\u2026 and what is the place of technology in your vision?\u201d\nMBC: \u201cwe live in a time obsessed with technology, and we forget that it is just a tool. I have not hidden from you, I am not a big supporter of the idea. For example, we use the e-reader with voice synthesizer\u2026 the problem is extremely important, but not mission critical, and so the technical solution makes sense\u2026 I am not sure I would delegate to technology, or to other humans for what is worth it, many other things on a regular base\u2026 what would be the meaning of life, if you give up on the very experiences that make it worth sharing and living? We are social animals, someone more important than me said once\u2026\u201d\nIL: \u201cMaria, thank you really for letting me peer into your family life\u2026 and thank you for your kind guidance. I hope that we will be able to live to your expectations, but I can already promise you that we will at least try our best!\u201d\nMBC: \u201cIt has been my pleasure Irene, it is so nice to meet a young person trying with enthusiasm to tackle a problem we have to deal and cope with every day. I wish you the best of luck, and I look forward to hearing about your progress!\u201d\nWhen Irene went back to the team after this conversation, she was confused, for having just experienced the most confrontational conversation about their project. Irene was moved emotionally by the passion and interest expressed by the mother. An experience that would leave her forever changed and stretched.\nWith Irene insisting, a small group of three people from the original team started diverging from the original path of designing a wearable \u201csmall world\u201d navigation system. They started brainstorming wildly about educational concepts.\nIndependently from the rest of the team, which opposed the need to bring to completion the academic assignment, they sought a new agreement with their mentor and started optimal\xa0thinking at 360\xba. Using 3D ultrasound-based haptic interfaces to offer interactive geometry education or simulators for practical tasks that would completely substitute visualization for acoustic and tactile feedbacks? Most of the early ideas were dropped when their mentor, or people not involved in the team that he suggested to talk to, would object other low-tech solutions (e.g.: wooden models for 3D geometry) could deliver almost the same experience, significantly undercutting the complexities of the projects.\nIt was during this na\xefve and intense search, that their mentor showed them a video of a blind person using tongue clicks to echolocate while biking (!!!). The rest, as they say, is history, and we will share with you a few details about the early testing in a next post\u2026 so follow us The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon.\xa0\n*To protect the privacy of individuals the names and identifying details have been changed. \xa0There was a brand indicated, which we discovered is trusted among the blind community, but we do not think it is relevant here.', u'entity_id': 577, u'annotation_id': 9314, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Yes, you are getting it right.\nInnovation processes and progress policies should involve citizens as designers to build a much responsible and sustainable society.', u'entity_id': 10708, u'annotation_id': 9313, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Lorenzo Romagnoli (http://lorenzoromagnoli.me/) is an interaction designer that will be in charge of developing the mock-up and co-designing with users and other makers the needed prototypes for the projects openrampette and MIR.', u'entity_id': 852, u'annotation_id': 9312, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 9311, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 833, u'annotation_id': 9310, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u"methodology. It was phenomenal in highlighting illness, nutrition and general social dynamic in response to health. I'd be happy to share this as well as the Photovoice booklet. Please note that even though I managed the project the book was developed by the org that employed me. @NiekD & @Scigrades grade, I think you may find this to be a interesting method that is participatory in all aspects of the design of the product. The following collaborative videos (a participatory method in itself in which a community develops their own video highlighting a specific issue/cause they've isolated as important to develop:\xa0https://vimeo.com/186163072\xa0(Youth video focused on CVD) and\xa0https://vimeo.com/190529779\xa0(video developed by youth, elder populaton and Scientists collectively). Note that the youth developed a collaborative video and the adult population of the participants developed the Photovoice publication. We aimed to explore CVD from different generation's perspectives using differing tools. The adult population are community members that have kids or grandkids and have to consider them when purchasing, consuming or disposing of food, whereas the youth group were youth aged 18 - 28 that do not have to consider others when purchasing, consuming or disposing of food. If anyone is interested I'd be keen to write up a post and post or email persons copies of the Photobook.", u'entity_id': 33803, u'annotation_id': 9309, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30614, u'annotation_id': 9308, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29967, u'annotation_id': 9307, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27829, u'annotation_id': 9306, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Most social innovation projects start from the bottom-up, engaging communities by leveraging common interests. In the same way, we believe that designers should start at the ground level when dealing with the complexity of social organizations: before looking at needs and solutions, they should start from the definition of a system of shared values.\nIn line with the participatory nature of the topic, we intend to create a platform that uses co-design to research, define and communicate a new authentic identity for the Bovisa area.', u'entity_id': 26067, u'annotation_id': 9305, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Where progress was slow or absent within the system, we took\xa0it upon ourselves to prototype and demonstrate how necessary supports could be delivered in partnership and collaboration between health providers, community groups, and local authorities based on a cooperative ethos of mutual support. We believe our approach will be of value and benefit because', u'entity_id': 757, u'annotation_id': 9304, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Co-designing / mobilizing resources\xa0of course we will not predefine outputs, but rather keep the sessions open to any outcomes.', u'entity_id': 819, u'annotation_id': 9303, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'I was at a conference dedicated to the\xa0topic last week; a full programme, even quite diverse for most standards, and data\xa0collection and related issues were\xa0all anyone wanted to talk about. Insight does not progress if the wrong questions are being asked. It is detrimental if forms of participatory science are looked at only in this way. A perspective like the one you just posted could help to radically change that, to show that better questions should be asked.', u'entity_id': 14733, u'annotation_id': 9302, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'\u201cLocal authorities are no longer perceived as the only party expected to solve complex issues in cities\u201d (source)\nThis post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens.\nLiving Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people\u2019s relationship with city officials.', u'entity_id': 33746, u'annotation_id': 9301, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'It\u2019s fascinating to play with the idea of a healthcare student classroom where, instead of feeding people with theories, teachers would create space where students meet makers of all sorts and discuss various technological innovations with them, and spend time with their patients, getting hands on experience in various cases. By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals. Their work style would be more inclusive and horizontal, and they would be more interested in critical thinking and discussion, sharing and transparency.', u'entity_id': 524, u'annotation_id': 9300, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Our approach has its roots in service and human-centered design. A lot of people are using these ideas now. Seven years ago, when we started, they were not so well known. We have a whole team of designers, including regional designers who use a participatory, ethnographic, HCD approach. They do in-depth site visits and investigate the context in which the apps will be used, and use a variety of techniques to do so: system mapping, role playing, in-depth interviewing. Some questions they might ask: \u201cWhat is the current workflow? Ideal workflow?\u201d, \u201cWhat is the day-to-day like for end users?\u201d It\u2019s an intensive and essential process.', u'entity_id': 564, u'annotation_id': 9299, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u"Our proposal is that it should be an 'association' of participants (the patients), mentors (patients who done it) and facilitators (e.g. us-researchers, clinicians, etc....)\nParticipants come and see if WeHandU has a solution \xa0that solves the problem. If yes, then they becomes associates with a moral obligation to become mentors (helping newbees). This part should be free. Eventually facilitators time has to be payed in some way (It's probably impossible to convince a professional therapist\xa0to work for free)\nAre there some projects we can learn from?", u'entity_id': 17893, u'annotation_id': 9298, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'In this hacking event we will help a person to create his/her neuroprosthesis to recover hand or foot function.\xa0This could be a kickoff workshop for a project the we call WeHandU - a hackerspace for people with spinal cord injury,stroke, multiple sclerosis. It fits perfectly to a 100k grant coming up in september, but we need to recruit paricipants before time runs out.', u'entity_id': 11841, u'annotation_id': 9297, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'numbers. However, as long as assistive technology is not used it\u2019s difficult to identify exactly where to improve it. \xa0We know that consumers must be involved early in the development, it\u2019s difficult to do so in a realistic setting. We realize that marketing assistive technology is different than selling a robot vacuum cleaner.', u'entity_id': 516, u'annotation_id': 9296, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'At the end of january, the STOA (Science & Technology Office Assessment of the European Parliament) hosted a workshop about the study of the "Impact and Potential of collaborative Internet and additive manufacturing technologies". There are many clues and references about 3D printing development, trends in the field of education and healthcare. The possible scenarios are depicted thanks to a DELPHI-like study involving experts from all over Europe.', u'entity_id': 15268, u'annotation_id': 9295, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Thank you for your comment @Noemi\nI\'m not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see..\nUnfortunately the\xa0 community interactions are the goal and not the mean. I\'m doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus.\nThe idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I\'d love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.\xa0 What about starting in June talking about "e-patients and EHMs"? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist.', u'entity_id': 11219, u'annotation_id': 9294, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u", wow it struck me to see similarities in our approaches - the open approach to community learning in particular, and the focus on process. It seems you're more interested in teaching students collaborative practices than growing their knowledge of healthcare, which should follow naturally\xa0as an outcome (by the way do you measure that in any way?).\nI have looked for the community interactions but the only space I found was this one (empty?)\xa0https://puntozero.github.io/community.html Should I go somewhere else?\nOne last point for now, your timeline follows closely OpenCare as well. Is it possible for non-registered students to participate in the webinars? If so, we might consider partnering up - as many\xa0community\xa0members here speak Italian and could be interested to join.", u'entity_id': 8059, u'annotation_id': 9293, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'The World Wide Web is increasingly useful to experiment, produce and research for identities, relations and objects in the field of "Healthcare & Innovation" such as Open Source, Open Access, 3D printing and Additive manufacturing, HCWH (Health Care Without Harm), Augmented and Virtual Reality, Co-Working, Workscaping and other important and emerging issues. The bet of PUNTOZERO is to call for interest and shape a networking model motivating healthcare professionals in sharing experiences and co-driving innovation and care programs together with patients and open networks.\nRead our agenda.\nThe idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about "healthcare", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable "umwelt" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.', u'entity_id': 686, u'annotation_id': 9292, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'On top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver.', u'entity_id': 735, u'annotation_id': 9291, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Hey everyone,\nthanks for your thoughts! The idea of an "interactive camp" whithout\xa0the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different "problems" from each other but to organize the camp differently from the very first:\n"We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs."\nand as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here:\xa0http://www.roc21.net)\nThe idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move\xa0to a better place as soon as possible.\xa0\nBut in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp\xa0where we were\xa0building stuff all together, was really nice because we were doing something with our hands and totally\xa0forgot the situation around us.', u'entity_id': 26018, u'annotation_id': 9290, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Hello everyone,\xa0 as Wemake we would like to share more research around existing products that align with the concept of care.\xa0\xa0 This has been part of our co-design process, and we would like to expand the usefulness by sharing more ideas.\xa0 Below is a project called Maestro, it offers a new way of control, something which can be further used for solving care issued related to some phyical mobility challenges.\xa0 The posts to follow will elaborate on different technologies applied in open projects around the theme of care.\n\xa0\nMaestro\nAbout:\xa0 Making your own finger mounted input device to control the cursor.\nCountry: USA\nYear: 2015\nBy: Jonggi Hong - student of the course \u201cTangible Interactive Computing\u201d taken by Professor Jon Froehlich at the University of Maryland, College Park. \n\xa0\nIt is not specified if this project solves a specific medical or social issue. But, surely, it can be a starting point for new projects which can help mobility-impaired people in their everyday issues. Maestro was made as part of the CS graduate course "Tangible Interactive Computing" at the University of Maryland, College Park taught by Professor Jon Froehlich. Maestro is an affordablle wearable input device using the orientation of the finger. During this course wearable small devices on the finger has been investigated to provide easy access to PC and surrounding environment (NailO, HandSight). Maestro enables user to do pointing and scrolling based on the orientation of the finger and contact between fingers.\nHow is it open?\n\n\nMaestro has the creative commons licence BY-NC-SA (Attribution-NonCommercial-ShareAlike 2.5 Generic).\n \n\nAnyone can clone and fork it.\n \n\nSource code and 3D printer files can be downloaded for free, some hardware components need to be bought to re-create the device though: \n \n\n\xa0\n\xa0BOM\n\n\nArduino Pro Mini https://www.sparkfun.com/products/11113\n \n\n9DOF IMU sensor stick https://www.sparkfun.com/products/10724\n \n\nCopper tape (or any other small conductive material) \n \n\n3 resistors (1~10 mega ohm, big resistance is better) \n \n\nWires, tape \n \n\n3D printer\n \n\nLink: http://www.instructables.com/id/Maestro-finger-mounted-input-device-to-control-the/\nhttps://www.youtube.com/watch?time_continue=7&v=JNPBKL6r3es', u'entity_id': 512, u'annotation_id': 9289, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u"They key will be to get lots of people who have experience of working with refugees already, together with lots of people who have useful experience from other areas of life. Then both sides can bounce off each other.\nI still think that a hackathon like this would be best suited to taking place in Greece or Italy, where the incoming flow is still increasing and there is a high likelihood that another disaster may occur (i'm thinking about the recent Italian Earthquakes).", u'entity_id': 13477, u'annotation_id': 9288, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Some time ago, just before the OpenCare Project\'s start, I had tried to involve the LEDHA (http://www.ledha.it/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of "WeHandU". I believe that the proposal to Rune can actively engage these people.', u'entity_id': 29072, u'annotation_id': 9287, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u"Thanks, @Alberto. You coined it perfectly '\xa0This is about patients\xa0being\xa0researchers, and viceversa'. Actually we try to avoid terms like patients (https://en.wiktionary.org/wiki/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.", u'entity_id': 26952, u'annotation_id': 9286, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients\xa0being\xa0researchers, and viceversa.', u'entity_id': 26032, u'annotation_id': 9285, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u"This initiative is not intended as research, not intended as competing with hospital regulations. It's aim is to join experts (=people dedicating time to making mistakes) with newbees (people spending time adapting/improving to new/chronic physical conditions.", u'entity_id': 21631, u'annotation_id': 9284, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'what it would be like for patients to work side by side with researchers".', u'entity_id': 21631, u'annotation_id': 9283, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'then we know about a number of other solutions for other physical functions. When you work with people you find solutions.', u'entity_id': 12142, u'annotation_id': 9282, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'But to be sure: are you working on a makerspace or on a series of activities to happen in one or more existing spaces?', u'entity_id': 10548, u'annotation_id': 9281, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'There will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices.', u'entity_id': 720, u'annotation_id': 9280, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22106, u'annotation_id': 9279, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 17588, u'annotation_id': 9278, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'If "newcomers" (generic term because newcomers might have been around for some time now!)\xa0were actually part of the design and the project team they\'d have new insights into how more diverse communities can be engaged. This is exactly what we\'re looking at with OpenCare - novel ways of improving\xa0promising projects out there, even if these new ways are\xa0just insights or if it means borrowing ideas from different projects faring better already.', u'entity_id': 12157, u'annotation_id': 9277, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u"1. At LOTE5 we are organising this reflexive design exercise on Collaborative inclusion: how migrants-residents collaboration can produce social values. The event is run by Ezio Manzini, one the world's leading designers for social innovation. You can partner with us\xa0if you want to help make it into a workshop on addressing specific problems tied to reception and inclusion of asylum seekers. Or just sign up and participate.", u'entity_id': 5234, u'annotation_id': 9276, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 20113, u'annotation_id': 9275, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'So, in 2000 Access Space opened. We believed it would be a good model to help people get engaged with technology. We invite every visitor to define their OWN objectives with trash technology - it could be making images, sounds, music, robots, websites, designs, photo galleries... It could be building a business, making new networks, rebuilding computers, or whatever. Our key test is that people THEMSELVES set their agenda. We don\'t work with a curriculum. And we don\'t have teachers. Instead, we ask participants to help each other - and because they\'re all working on "cool stuff" not "boring stuff" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience.', u'entity_id': 1710, u'annotation_id': 9274, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'collaborative processes, free and open culture, research of financial aid for creative and social projects often defined "cool, but too innovative", with a poor market value also if the cultural, social, creative value is very high.', u'entity_id': 14720, u'annotation_id': 9273, u'tag_id': 1283, u'entity_type': u'comment'}, {u'quote': u'Ezio: co-design process. These tools could be part of the solution. We are now a network and there could then be a network of nurses doctors etc. This discussion can in a similar way happen among care-givers? Costantino: the conversation will not be the result of this group, but of a larger group. But the network of care-givers might be not committed, skilled, or motivated to use an online tool.', u'entity_id': 5403, u'annotation_id': 9267, u'tag_id': 1283, u'entity_type': u'post'}, {u'quote': u'1. Reaching out to fitting partners in a strategic way. Securing the resources to get started involved 3 questions: What\u2019s the topic? Who\u2019s around to partner up with? Where does the money come from? It could be that the OpenVillage solves 2) and 3) by being hosted temporarily in a community whose values are aligned, which has the space for us: could be an industrial park, an eco-village, a farmland and so on.', u'entity_id': 36387, u'annotation_id': 11706, u'tag_id': 1284, u'entity_type': u'post'}, {u'quote': u"We've been occupied enough with holding the lab work together that we haven't gotten around to tackling the aspect of establishing partnerships with any sustained effort. Though perhaps a half-dozen potential collaborators with serious interest have reached out, we're still at the point of initial discussions.\nI'd love to discuss more about your hacker space in Ghent to see how you can get involved!", u'entity_id': 17455, u'annotation_id': 9320, u'tag_id': 1284, u'entity_type': u'comment'}, {u'quote': u"I was wondering:\xa0which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally.\xa0The biohackerspace in Ghent, Belgium where I'm involved surely would be.", u'entity_id': 14446, u'annotation_id': 9319, u'tag_id': 1284, u'entity_type': u'comment'}, {u'quote': u"Hi Noemi, in response\xa0 to your post, I would say we want to be inter- dependent,\xa0 not independent!\xa0\xa0\xa0 I guess I wrote the original post in rather a hurry, in response to the Open&Change\xa0 call, so\xa0 it probably didn't get it quite right.\xa0\xa0 I see our project as forging some third way between state or charity\xa0 ownership on the one hand, and private for-profit ownership on the other.\xa0 it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.\xa0 I envisage a movement of care homes,\xa0 highly networked,\xa0 helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are\xa0 starting slowly", u'entity_id': 24250, u'annotation_id': 9318, u'tag_id': 1284, u'entity_type': u'comment'}, {u'quote': u'And so, with a small group of Milanese from all over the world we decided to organize a party to celebrate the diversity of our country and our city. We called it Vuka, which means \u201cArise!\u201d or \u201cAwaken!\u201d in the Zulu language; and we are going to throw it tomorrow, Tuesday March 22nd at 10 p.m. sharp, at Casa del Pane di Corso di Porta Venezia 63 (map). We designed it as a club night for dancing to the sound of the most cutting-edge clubs of Lagos, Karachi and Barletta [a small town in the south of Italy]; and where the Milanese of any origin are welcome and respected. Join Medhin (Milano\u2013Asmara), Nadia (Stockholm), Dan (Johannesburg), Davide (Verona-Sydney-Osaka) and myself to dance away to the world\u2019s beat in a space where everyone\u2019s welcome, and our many differences of living out Milano power up the party.', u'entity_id': 14055, u'annotation_id': 9321, u'tag_id': 1285, u'entity_type': u'comment'}, {u'quote': u"Yes i'm well aware that it's from an inner circle that collaboration needs to thrive, that is also why i love my coffee moments with passionated people, listening to their stories is rewarding on itself. I try to be at that moment as much possible in the present, just reactive enough toward that person.\nThanks for sharing your thoughts about the subject", u'entity_id': 33776, u'annotation_id': 9322, u'tag_id': 1286, u'entity_type': u'comment'}, {u'quote': u'The organisation needs to ultimately be accountable to diabetes patients. It can\u2019t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don\u2019t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.', u'entity_id': 38856, u'annotation_id': 11870, u'tag_id': 1287, u'entity_type': u'post'}, {u'quote': u'The doctor used to be viewed like a minister who sacrificed his life for the patient, but there has been a shift. \u201cThe patient now sacrifices his livelihood for the doctor\u2019s wellbeing.\u201d', u'entity_id': 713, u'annotation_id': 9323, u'tag_id': 1287, u'entity_type': u'post'}, {u'quote': u'The most pressing need now is to set up a patient cooperative for Open Insulin and how to prototype it.And clear out the international collaboration that is now emerging in the open insulin research.\n\nSome history of the project.\n\nEarly 2015 in Counter Culture Labs, biohacker collective in Oakland, developed consensus around the idea that we could make insulin in a lab like their. The idea is worth pursuing, the technology is there. First it was a technical motivation, afterwards it was clear that insulin was a social and economical issue. \n\nMany people don\u2019t have access, it\u2019s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based).\n\nThere\u2019s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production.\n\nScience and engineering:Went through one proof of concept iteration in an E. coli bacteria (for troubleshooting methods). Took about a year. We made a precursor protein to insulin. Bacteria however is not able to convert the precursor into insulin, so since early 2017 we\u2019re looking at yeast, because that organism can do everything inside the organism. The protocol needs to be simple and easily reproduced.\n\n6 months - 1 year we will have engineered the strain that does everything. Then we can move to using the strain and producing or scaling up. So the question is now: how do we structure the legal entities to govern the production.\n\nTeams from Ghent (ReaGent) and Sydney (BioFoundry) joined the project. International collaboration is unfolding. We need to organise this better and set up some legal frameworks for sharing the IP that gets generated, keeping the goals of the project in mind, we want to have a commons framework. Allowing entities to use it, but making sure that they do so in keeping with commons principles. \n\nThe organisation needs to ultimately be accountable to diabetes patients. It can\u2019t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don\u2019t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.\n\nMany semi-independent manufacturing efforts that are localised, but sharing knowledge. A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing.\n\nThe FDA is the biggest player in making this a reality. Big part of this is making a rigorous case and showing the costs of illness and the benefits of our alternative. Depending on how their own incentives work, they might not care. \n\nWe have 2 goals, proposal is to split in two groups:\n\n1. How do we move from here to this cooperative?\n\nA cooperative as a platform where patients would be the main stakeholders.The patent is not to stop other people from doing it, but to protect the \n\nCharacteristics of the agreement:\n\nRate of profit determined by patientsWhere it is invested is determined by patients.\n\nExample of medical cannabis cooperatives. Maybe we can use it as a template for our organisation. Tailor this to the local jurisdiction. \n\nWe need some kind of global scale organisation that holds the IP in custody. Perhaps a Swiss foundation. A public benefit corporation.\n\nForging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.Lucas Gonzales. Epidemiologist. His job is to prepare for flu pandemics in the canary islands. As part of preparing the plan, he found out there\u2019s 8000\u2019s diabetics in the CI and there is no capacity on the island (comes from Germany). So in case of pandemic, they are screwed. This could be an angle.\n\nSynthetic pancreas people. Firewall of FDA and then they appealed to free speech. They don\u2019t sell, yet share the schematics. \n\nMake it look less like a market transaction, and more like a club: participating in the testing. \n\nAnalogy to Open Source Ecology. Centralized body of knowledge, localized operation to build machines by doing workshops etc. \n\n\nChris Cook:\nAt the global level: memorandum of understanding, but otherwise you\u2019re free to do what you want.\n\n\nUnincorporated association:Agreement, but not in any legal form. 2 pager. For very early stage funding. Like a club. People have an account in the name of the club. This could be global from day 1, with members. It has a \u2018hatching clause\u2019 which makes it hatch into an actual legal form. \n\nAction items:\n\n\nReview relevant structures\nPitch this to city governments (Milan next month, Oakland, Ghent)\nHave a legal structure, so that funders know where their money goes\nCali cooperative weed\nCooperatives in calif and europe (Switzerland? Winnie\u2019s contact Malcolm Bain? European Cooperative Association)\nCentralized holder of IP\n\n\nReview the agreement of Chris.\n\nHave an inside trusted partner when you pitch this, so that\u2019s it\u2019s not 50 50 in they liked it not. Clear action plan with timelines. Open to input. Jump in early for a premium. Weigh the pro\u2019s and con\u2019s of premium. Winnie can talk about it with the head of strategy for the City of Ghent.\n\nIn Oakland: never got to the head, always mid or low level managers. You need to get people in power to not necessarily endorse it, but mainly not stop it. An endorsement would really help though. A paragraph and collect signatures of \u2018innovation, super cool project\u2019. \n\n2. How do we do international collaboration?\n\n\nWinnie:\n\nPeople are disgusted by how biotechnology industry works. Morally it\u2019s not okay that people are taxed so much money. We started a collaboration in March between Oakland, Ghent, and Sidney. It was hard to get access to information - where are the best practices documented. The team in Oakland was spread thin, so this makes it hard to scale internationally. Coincidentally it became good to collaborate, but no investment to find sinergies, for example split the experiments between groups.\nWe\u2019ve been in touch online only, and visiting helped a lot to develop trust, despite calling on skype every 2 weeks.\nTwo key problems:\n\nDocumentation and\nTrust\n\n\n\n\n\nGaby:\nIs it a problem of infrastructure - better tools, better software, or about changing the culture?\n\n\nWinnie:\n\nIt\u2019s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it\u2019s going to be very bumpy.\nNo platform for documentation yet.We should have a method of getting everyone on board, in difft timezones and geographical points?\nThomas: What is the patients\u2019 perception?In Belgium, the insulin is covered by the government, so not many incentives to participate among that group. The motivation here is the biotech industry.\n\n\n\n\nCindys:\n\nBuild on an existing community that has thousands of people in it, and not take on the burden of building a new platform.The Public Lab community - good for discussion and file sharing, and replicability.\nAttend the barnraising and do a workshop there? \n\n\n\n\nMatteo:\nReplicability across countries: there is a lack of culture of open science and a knowledge gap in biology.A transnational cooperative system funded by a big donor which fosters development in underdev countries? The path from need to solution is longer there - building trust, community building takes more time.\n\n\nWinnie:\nIdeally find a big donor but with niche interest locally/ in a region. The community coordination and interface needs to be funded too - i.e. the Oakland team is more focused on the research itself.\n\n\n\nCindys:\nPublic Lab has developed frameworks to use - to create a context and make sure it feeds back and then it is championed, took forward by the organisation.\n\n\n\nGaby:\n\nLearning to do science by sharing information, many times tacit. But you either have to think of the role of the person making this, or have an incentive - a place where we give recognition where people actually see it and appreciate the value.\nGroups back together\nA platform cooperative as a club insulin: the insulin users and platform service provider (management, quality control). A global framework in which local production can put its roots in local jurisdiction. The overarching club, anyone can join and it doesn\u2019t own anything.\n\n\n\n\nCindys:\nThree issues discussed - platform documentation, trust, building the network\n\n\nThomas:\nInterested in local production, is in a process of launching a High Institute of Open (?) Science. He\u2019s going back to Cameroon, it would be an opportunity to test open insulin there. \n\n\n\nGaby:\nSharing information', u'entity_id': 38856, u'annotation_id': 11862, u'tag_id': 1939, u'entity_type': u'post'}, {u'quote': u'By understanding the experiences of patients and reflecting on their conversations and interactions gives us insight that led to their initiative. This is a snippet of the early phase of CoreCareCollective', u'entity_id': 35903, u'annotation_id': 11590, u'tag_id': 1288, u'entity_type': u'post'}, {u'quote': u'*\xa0\u201aDisabled ones\u2019 are in this case people, the participants, looking\xa0for a alleviation for lack of body function. In contrast to established health care (\xa0were the patient is often a passive receiver patiently waiting for ....), the WeHandU (see above reply)\xa0philosophy is NOT to decide what is best for a patient.\xa0Rather a person living with an impairment is looking for a way to resolve that HE/SHE considers a problem and hopefully resolve/alleviate it in a creative environment\xa0(I am often contacted by such people). The \u201anot-patient\u2019 but participant is... a participant. People not \u201awanting any aid\u2019 (and they are most) will not come in WeHandU.\xa0(BTW. Disabled people is not existing in the modern vocabulary)', u'entity_id': 33426, u'annotation_id': 9326, u'tag_id': 1288, u'entity_type': u'comment'}, {u'quote': u'For the sake of our understanding, let me be pedant and allow me to stress that\xa0disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status.\xa0A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a "because".', u'entity_id': 23523, u'annotation_id': 9325, u'tag_id': 1288, u'entity_type': u'comment'}, {u'quote': u'First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months.\n@Rune\nI think we have some miscommunication here. I\'m not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has \'similar\' issues to the issues of open source.\nOn your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by \xa0P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don\'t believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper "Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis.\nThere are many more things we might discuss about regulation, such as the FDA\'s limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM\nBy making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I\'m not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I\'m happy to provide more reading and evidence, when time permits.', u'entity_id': 26028, u'annotation_id': 9324, u'tag_id': 1288, u'entity_type': u'comment'}, {u'quote': u'Dandelion "Pissenlit" roots for cure cacer, Yes it\'s possible and without fees!!\n\n\xa0There are many different types of cancer any people get killed by it. It\'s enough we have found the cure for many of them ( prostate, intestine, lungs ,...)\n\nMany people aboard have been heal by this roots when they heard about it, they stop using chimiotherapy ( chimiotherapy = traitement used for having a long day of living, is not enough efficient!!! The bad effect of this treatment is not his non efficiency but also killing the healthy cells, even if he kill the cancer cells inside body.!!! From this treatment there are some bad effect like, appetiteless, loss of weight, weakness of antibody, ...)\xa0\n\nActually, 7 people here in Madagascar have been heal by this treatment when they heard about it, and follow the instructions. It\'s \xa0a close friend of mine who have been sick by "liver and intestine" cacer. He was up to follow chimiotherapy \xa0treatment so I told him to follow this natural treatment \xa0first before he decided to spend \xa0money on chimiotherapy. When I heard about this plant from Canadian friend, we decided to use it.\xa0\n\nHe was so happy when he gets cured after 1 week \xa0of treatment, when he decided to drink infusion from dandelion\'s root. Doctors doesn\'t find any clue of cancer on him. Maybe the phase of his cacer was primary and it\'s was easy to cure. So my conscience is restless when I heard that there are many people who suffer, dead from cancer "it\'s like non assistance of people in danger". I decided to share it with you.\xa0\n\n-THIS IS THE YOU NEED TO FOLLOW.\xa0\n\n1# You need to collect dandelion on a place where cars doesn\'t barely ride.\n\n2# non chemical insecticides or related haven\'t been sprayed on the soil where you collect it.\xa0\n\n-PREPARATION\xa0\n\nBoil 1 liter of top water, when it\'s still boiling, ad 100 grams of \xa0dandelion roots. \xa0Leave it boiling \xa0for 10 minutes ( never more never less than 10mn. It\'s has been calculate that "active elements" goes out at this moment. \xa0If it\'s more than that, it\'s will kill those active elements. \xa0When it\'s done let it get cold. This is your "drinking water for one day" the better moment for drinking much is before breakfast and dinner, also drinkable in middle time. Do it for 20 days and stop for 10 days. Keep do it again from the beginning as a cycle of one month (20 plus 10 days.)\xa0\n\nIf everything has been followed step by step in one week, we can find the changes ; inside pain goes out, \xa0patient will find appetite, this is the major factor of this treatment and it\'s make a big different between it and chimiotherapy.\xa0\n\nIf I understand and correct me if I\'m wrong!! chimiotherapy kills cancerous cells but also healthy cells. Patient get weak, lost appetite and doesn\'t have no much time for living, \xa0It\'s a kind of catalyst inside body.\xa0\n\nBut this dandelion\'s \xa0roots hunt and kill all cancerous cells inside body. \xa0After you recognize that patient is completely cured, all we have to do is care about wound healing leave by the cancer inside the body. We can keep doing it by natural method using garlic. \xa0Take one glass of hot water, \xa0scratch 3 or 4 peaces of garlic and put it inside the glass of hot water. \xa0Leave it for one night and drink it before breakfast, \xa0keep do it until its gone, \xa0or you can still buy some medecines in drug store if you want to heal \xa0wound leaved by cancer.\n\n\xa0I hope that everyone can find a way to cure and fight cancer on his own natural or chimical.\n\nIf you have any questions about this, any suggestions or critics please don\'t hesitate to write bellow\xa0\n\nDear friends Edgeryders, I wish an Happy and successful new year to each every one of you.', u'entity_id': 805, u'annotation_id': 12963, u'tag_id': 2148, u'entity_type': u'post'}, {u'quote': u"This is about patients\xa0being\xa0researchers, and viceversa'.", u'entity_id': 26952, u'annotation_id': 9328, u'tag_id': 2148, u'entity_type': u'comment'}, {u'quote': u'But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients', u'entity_id': 26032, u'annotation_id': 9327, u'tag_id': 2148, u'entity_type': u'comment'}, {u'quote': u"So I have to simultaneously convince a patient of the soundness of the medical approach as a whole and of my own competence - when they may be used to thinking in terms of trust in the system and not the individual.\nThis is why I was keen to have patients provide some of the impetus for engagement themselves - if they waver in their trust of me or the medicine there is no institutional push for them to remain in treatment as there is in mainstream medicine.\nBut evidently part of keeping them engaged is providing that sense of medical authority that they want.\nSo now I'm thinking about how I can generate the kind of reassuring authority I need without falling into the established patterns of power relationships we are used to in the west.", u'entity_id': 18817, u'annotation_id': 9332, u'tag_id': 1290, u'entity_type': u'comment'}, {u'quote': u"I enjoyed reading your well written post @steelweaver ! I have a rich medical history and although I had a brief run in with acupuncture, I never really went for it. I'd still like try it out\xa0when the opportunity presents itself.\nIt's an interesting remark on the authority of health practitioners @steelweaver and @Noemi . I think the reliance on\xa0guidance by an expert\xa0is in large part\xa0the result of the patients\xa0not being as familiar with acupuncture\xa0as the expert. Yet patients\xa0are there for a reason: at some level, they believe in\xa0the positive potential of the treatment. This common\xa0belief of both parties is the base for authority and\xa0lends you, or the practitioner, as an expert the authority to give direction. Authority governs the interaction and when nobody (or nothing) assumes it, confusion arises. To be clear:\xa0authority is different from power.\nI can complement this with my personal experience in the standard healthcare system in Belgium. For a little over 5 years I had a series of serious physical afflictions, which didn't ever seem to heal or resolve themselves and only got worse over the years. At the start I always\xa0left the clinic with a smile, which\xa0always disappeared in days, weeks or months as the situation deteriorated again. I experienced first hand that I was just\xa0a number, and that treating symptoms is faster and\xa0easier. Good thing for pharma companies, because endlessly treating symptoms sells more drugs.\xa0Finding the real cause takes longer, is harder and is more expensive, at least in the short term.\nI got pretty skeptical about the system by going from doctor to doctor and spending more time in physiotherapy than with my friends or family. Gradually I lost belief in the system. It was\xa0after I ultimately found the cause and cure (very simple ones at that) that whatever remained\xa0of my belief vanished.\xa0With that\xa0gone, there was no more common belief between me and the doctor, so the authority vanished. My language can't hide\xa0it: I found the\xa0solution, not a doctor or a system.\xa0For this specific\xa0illness, I will not lend authority very easily anymore either.\xa0I'm lucky, as I have a general idea of healthcare through my studies\xa0and know my body well by now, but this is clearly problematic for the general population when you hear similar stories with unhappy endings.\nAlso interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted).\xa0I think that might be a western thing, linked to what\xa0surfaced in the discussions with @alkasem23 about differences in care with Syria:\xa0in the west we put our trust in and rely on systems rather than other people. In some\xa0other cultures,\xa0people probably put their belief mainly in a person, the doctor.\nEasier interactions through\xa0the internet,\xa0powerful search engines,\xa0a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't\xa0always provide\xa0correct information, these factors also\xa0lead people to challenge the authority in terms of knowledge\xa0of the practitioner in the classical doctor's office. I\xa0think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare.\nImportantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of\xa0experimentation with new methods in the stories here on Edgeryders\xa0share some sort of\xa0community aspect. This\xa0illustrates a shift to lending authority to a\xa0collective rather than a system or a person. The\xa0collective can consist\xa0of patients, doctors or other caregivers and is likely\xa0a mixture ideally. In Syria the collective is mainly the family, according to Alkasem.\nLooking through this lens\xa0of authority\xa0is interesting and can be applied to many aspects of our\xa0daily lives.\xa0The matter is fresh in my head from a Dutch book I just finished reading, which I hope\xa0gets translated\xa0to English. If anyone is interested:\xa0the book builds on work by Hannah Arendt that\xa0you can certainly find", u'entity_id': 18779, u'annotation_id': 9331, u'tag_id': 1290, u'entity_type': u'comment'}, {u'quote': u"Talk about a slow revolution! It makes sense to me that we're hardwired to take univocal instructions more seriously, it shows that the doctor is not doubting his approach.\nPatient-doctor\xa0dynamics in healthcare is probably cultural too - we've heard stories from China where ambivalence or open endedness in medical consultations inspired fear more than confidence.", u'entity_id': 18496, u'annotation_id': 9330, u'tag_id': 1290, u'entity_type': u'comment'}, {u'quote': u"But it turns out that people actually want a bit more guidance / authority than that - perhaps this is just the legacy of hierarchical healthcare, that they feel more comfortable with a model that they are familiar with, or perhaps it is actually a greater part of being a therapist than I previously considered; that the nature of therapy is such that you need to have a degree of authority for the patient to productively assimilate the treatment. This obviously raises interesting questions about some of the 'horizontalist' projects featured in Opencare!", u'entity_id': 17844, u'annotation_id': 9329, u'tag_id': 1290, u'entity_type': u'comment'}, {u'quote': u"Bearing in mind that Serbia is extremely patriarchal country that many many people primarily uneducated, ignorant, limited by dogma, the church has a strong influence, the police is on the side who persecute\xa0LGBTQ,\xa0laws are not adopted nor respected,\xa0even the media are not friendly.\nBeing different in any sense means to be condemned, discriminated against, rejected. Like\xa0it is not enough that we have to\xa0deal with our\xa0demons and problems, and that's not enough, we have to fight with the rest of the world. And what is worse it is futile struggle, doomed to fail.\xa0\nI'm not a member of\xa0\xa0\xa0LGBTQ,\xa0I can not imagine what is happening in their soul,\xa0I believe it's scary and it's hard, extremely hard.\xa0\xa0I am someone who looks soul who hears the words and I really am not interested in anything else, really can not understand why anyone would be bother by\xa0LGBTQ, I ask why?\nWe are free, to do what we want, right? So why,\xa0Some give themselves the right to determine how we should behave, what to eat, who to love, how to dress, to be socially acceptable, and why we shoud care about their opinion.\xa0Unfortunately these moralists are the majority in our country, fake moralists who point out other people's mistakes to cover up their own, chasing people only that they would not be marginalized, persecution, condemn so they would not be convicted, these are people who also suffer, but they\xa0damage others and society as a whole, ALL of that can be cured.\xa0\nFirst, people need to understand that we are all different, but equal, we all have the right and that nobody has the right to endangers or give us verdict\xa0how we're going to live, that everyone should be looking at themselves and their own\xa0life, to solve their problems and \xa0not to care about other people's problems.\ntell me how\xa0wedding and adoption of a child endanger other families, how sex change threatens others, or dresses \xa0make \xa0someone uncomfortable ????\nImagine\xa0pain of \xa0LGBTQ and you, with your limited minds\xa0consider them ill and reject them and persecute, torture and abuse\n\xa0Our society have to change from the root, I regret and\xa0I am ashamed because I live in such\xa0society and \xa0that situation is not changing\nWe have to change family, education, political estambilsmenta, police,\nthe mind is like a parachute works only when it is open\nit is easier to break an atom than a prejudice\nWe need to do the impossible\nI believe that we can, step by step, it will not be easy,but we simply have to change everything , this is not a life and it is not worth to live like that", u'entity_id': 857, u'annotation_id': 9333, u'tag_id': 1291, u'entity_type': u'post'}, {u'quote': u'SENSORICA is the first instantiation of the OVN model. It originated in Montreal, in early 2011. The initial focus of the network was to develop open source scientific research equipment using commons-based peer production methodologies. Indeed, most of activities are coordinated from the SENSORICA Montreal lab, a physical location where local affiliates can meet and work together. However, the Network Resource Planning (NRP) tools that Sensoricans have developed lays the foundation of a strong decentralized community without geographical borders. It allows tracking of the flow of resources through the entire system, at both micro and macro levels. NRP is the mainstay of all SENSORICA projects, and enables SENSORICA to practically implement the ideologies of collaborative and open innovation in a transparent and equitable manner.', u'entity_id': 538, u'annotation_id': 9334, u'tag_id': 1292, u'entity_type': u'post'}, {u'quote': u'and inequitable interactions with institutional partners, but are now focussed on channeling our energy into positive action. It is a meta network between DIY science initiatives: part \u2018P2P: sharing best practices\u2019 and part \u2018advocacy for access to public research funding\u2019. So far most of the work we\u2019ve done has been about growing the network and finding our identity.', u'entity_id': 6427, u'annotation_id': 9361, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u'WeHandU consists of a site where users can browse a database of existing solution, and can share their own ideas. A group of chosen user, called MENTORS, will help develop ideas that look promising, granting a solid know-how in many field (design, engineering, law, medicin, etc.).', u'entity_id': 835, u'annotation_id': 9360, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u"The idea of understanding one's\xa0own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes\xa0out), or a many-to-many interaction between users. Can user A see the diary of user B? Do\xa0they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?", u'entity_id': 8578, u'annotation_id': 9359, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'Also, I proposed a model for the organization that is based on three levels:\nFoundation (Take care of the platform in general and connect the global community)\nNational Associations (Help to select projects and to develop the organization in each state)\nLocal Cooperatives (A group of citizens can apply to become a cooperative, it will have dedicated projects on the platform for that particular city, the aim is to do project together maybe about certain topics).', u'entity_id': 23217, u'annotation_id': 9358, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'1) Looking for 1000 projects (independent, possibly new, diverse to give everyone the chance to support the cause they care most). \xa0\nThis will be hosted on the platform for a certain amount of time\xa0and with a minimum and maximum goal (e.g. 5k-20k euros) when the platform will open.\n(I see the selection done thorugh\xa0an open call in different countries to have a worldwide coverage)', u'entity_id': 20627, u'annotation_id': 9357, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'Competition between a non-extractive and an extractive platform is somehow like David against Golia.\nI think the key is to pick the right platform and to craft the perfect strategy that enhances intrinsic and extrinsic motivation for the users.\nFor some reason (community-driven, aggregation platform, P2P are ordinary people, it produce lots of wealth by unlocking unused resources) I see Airbnb as the most suitable.', u'entity_id': 10667, u'annotation_id': 9356, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'The peer2peer accommodation market produces every year more than 1.5 billion dollars of revenues (the extracted part).\nIf Fairbnb will be able to take even a little share of the market, an incredible number of non-profit initiatives could be funded.\nWe want to use as little as possible of the revenues to keep up the platform and give back the majority of this money to communities through local projects thanks to a crowdfunding-like mechanism.\nIf we succeed thousands biohackers spaces, social streets, art exhibitions, solidarity initiatives, refugees projects, etc. could be funded.', u'entity_id': 829, u'annotation_id': 9355, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u'We also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of\xa0autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions.', u'entity_id': 757, u'annotation_id': 9354, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u'A peer-to-peer support group of mental health patients and caregivers.\nWhich formed with the idea to give out recommendations for improving HSE (state-provided) services.\nBut which ended up having to take on the role of innovators and start prototyping stuff, as institutional response was slow.\nAnd reconfigured itself in the context of the process through which Galway has re-invented itself to bid (successfully) for European Capital of Culture 2020.\nWith its main ally so far being not a hospital or a clinic, but an Arts Museum.\xa0\n\nIt is paradoxical and completely logical at once! I guess, in its own way, this is fairly typical of the idiosyncratic paths taken by communities of care. You work with the tools you find lying around, and they might be highly specific of your place and time.\xa0\nECOC processes have one thing going for them: they do encourage everyone in the bidding city to think as a local community, like a piece of a local system. Maybe it made it more natural for a group interested in mental health issues and an arts museum to form an alliance.', u'entity_id': 15044, u'annotation_id': 9353, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'FairCoop exists since 2 years, and in Thessaloniki, it started a few months ago. We have links with dozens of cooperatives, organizations, initiatives and communities - such as Bitcoin community, P2P foundation, Catalonia Cooperative, etc. We\u2019ve brought on board more than 1000 people so far. Yet, there\u2019s still a lot to be done. We need to connect and build stronger alliances even in the cities - in Thessaloniki, many existing initiatives remain disconnected from each other. We need to develop models of integral cooperation on different levels. Bring decentralized technologies to local communities to make them more resilient. And seed the idea of cooperation, which will replace competition.', u'entity_id': 741, u'annotation_id': 9352, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u'Another one is to replace yearly reports from traineeship by an online book, accessible to everyone and encouraging discussion. And it actually did. While i was working as professor I also skipped preparing tests and asked each pupil to come up with one multiple choice question, and out of 150 of them, were chosen random 20 questions set that became the test I made an exam. It was a very democratic, surprising step for students. I tend to be also available online for my students as much as possibile and I put a lot of stress on digital learning and Open Educational Resources (OER) - to save paper, to spare their pockets, to promote more openness, to bring more p2p learning. Finally, I try to skip the usage of huge, expensive books in the classrooms - instead, I look for good, open source materials, and if they\u2019re in English, I ask my students to translate one page each and put it up in Italian as a wiki, available to everyone. There are all these ways in which students are forced to meet and talk, an essential practice, widely absent in the formal education.', u'entity_id': 524, u'annotation_id': 9351, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u'This is where my work comes in. As a student working on the school\u2019s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.', u'entity_id': 724, u'annotation_id': 9350, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u"Great to see you made your way to Edgeryders @WinniePoncelet and thanks @Alex Levene for bringing me into this loop! I am indeed working with Winnie and a few others on an P2P initiative to let people grow edible insects at home. I saw the project as a slow burner. It is hard to bring the P2P approach to the public and it's a constant experiment to find the right approach to get is going. For me and the others, the project is going down on the priority ladder of all our activities...", u'entity_id': 20249, u'annotation_id': 9349, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22093, u'annotation_id': 9348, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'community" as your most important resource in coping with all these problems. Several people here seem to agree with you. This suggests that a good way to help mental health patients might be to turn every one of them into a healer for others, participating into a community healing itself. This came up in the story by @alan . His doctor suggested he gets involved in mental health advocacy immediately after making the diagnosis (full story). What do you', u'entity_id': 20576, u'annotation_id': 9347, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'While this story documents the power of underground networks to find pragmatic solutions, I am wondering if and why "P2P care" solutions do not equally pop up to create solutions through prevention (that is, preventing the pregnancies in the first place)? It could be that P2P solutions have a problem with collective motivation here, just as governments tend to rather react that act proactively, but more severe since P2P / underground solutions are so resource constrained. If so, that could point to a major issue with all P2P solutions into care (that is, making for a nice research focus).\nI\'m pretty sure there is common ground to say prefentive solutions are preferrable (assuming that women who are undergoing abortion would have preferred not to, that is, not to have become pregnant in the first place). So, no need to refer to laws or morals. Even if the law allows it, there is still reason to prevent pregnancy.\nSo even though contraception is widely available in Europe, on a society scale there are still this many unwanted pregnancies. What I\'m wondering here is about the reasons for this, and what P2P initiatives can do and are doing here? Of course this will have to do a lot with slow-changing "fuzzy targets" like culture, taboos, sexual practices and preferences. A crazy story from Nepal about how all this impairs the use of "normal" contraceptives among the young generation is this one (Natalia found it some time last year). But in Europe \u2026? What\'s going on here?', u'entity_id': 23368, u'annotation_id': 9346, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'The experience\xa0left me thinking that peer support was exactly what was needed by a lot of people.', u'entity_id': 16456, u'annotation_id': 9345, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'Education, peer to peer, in a developing country: this sounds like a project @Matthias is developing in Nepal. He calls it "pocket university". Matt, do we have a link to the idea yet?', u'entity_id': 13915, u'annotation_id': 9344, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u"The management team at the warehouse made some great improvements even in the short time I was there. More training for long term volunteers on conflict resolution and dealing with difficult people. More training on how to self care and look after each other. The warehouse caravan park was designated an alcohol-free zone. Resident meeting were set back up. A weekly 'safe space' for free and open personal discussion was created in the warehouse. Weekly film screenings were restarted.", u'entity_id': 536, u'annotation_id': 9343, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u'\u201cI think it is always important to find new symbiotic relationships between people. One Project I\u2019ve come across is one in which there were two groups: one group who wanted to learn English but didnt have connections to do so, and the other group was old lonely group from America. These two groups were able to talk to each other via skype. The Old people had the joy of talking to somebody who was interested in learning. And the young people learned English. It\u2019s very nice to see people caring about each other that way.\u201d', u'entity_id': 494, u'annotation_id': 9342, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u"It seems to me that the experiences you describe are all community-based. It's always people, it's always peer-to-peer. People give each other acceptance,\xa0encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make \u2013 if only because the people in\xa0these experiences have\xa0two\xa0ways to get acceptance and validation, one through material achievement and one through the community.", u'entity_id': 6719, u'annotation_id': 9341, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'Our key test is that people THEMSELVES set their agenda. We don\'t work with a curriculum. And we don\'t have teachers. Instead, we ask participants to help each other - and because they\'re all working on "cool stuff" not "boring stuff" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience.', u'entity_id': 1710, u'annotation_id': 9340, u'tag_id': 1294, u'entity_type': u'post'}, {u'quote': u'peer-to-peer help beats the living daylight out of top down teaching.', u'entity_id': 6759, u'annotation_id': 9339, u'tag_id': 1294, u'entity_type': u'comment'}, {u'quote': u'It\u2019s unsettling and creates some vulnerability. But in being open to the confusion and discomfort - I\xa0sense I\u2019m creating space for something new. This is my learning. I\u2019m open to being challenged by as well as offering challenges to all I\u2019m encountering - I guess this is a process of\xa0peer validation.', u'entity_id': 6462, u'annotation_id': 9335, u'tag_id': 1293, u'entity_type': u'post'}, {u'quote': u'Hello there,\xa0\xa0 I am copying a story on behalf of Filippo, a volunteer to the community of\xa0 pemphigus, an auto-immune disease that affects skin layers, causing them to detach, form blisters, among other complications.\xa0\xa0 Filippo will join the conversation, but we wanted to speed up the onboarding barrier, while link the story to other software volunteers whom we met at the MakerFaire in Rome.\xa0 Lets see how his works \n\n" Just as first input, a simple idea that is needed is a \u201cscratching indicator\u201d?This is something missing in the scenario, I mean some app that using a wearable device (like a apple watch or something designed ad hoc \u2013 a simple arduino like mb with an accelerometer should be sufficient) can identify the scratching movement of the arm an apply an indicator.The objective is to measure a quantity (a number) that indicate the duration and the intensity of scratching activity of te patient, building a sort of standard to be used for that \xa0that kind of patoloty and patients to be used to analyze the efficacy of specific therapy on one of the worst and less understood symptoms, the itching.\xa0\xa0This could be the starting point of this app for pemphigus/pemphigoid patients, (but not limited to them), that can be integrated with other functionalities aiming to \u201cmeasure\u201d efficacy of therapies granting an indication of the status of the patient.\xa0Do you think this could be a valid input to start the discussion?"', u'entity_id': 799, u'annotation_id': 12964, u'tag_id': 1295, u'entity_type': u'post'}, {u'quote': u'I am no expert, but I think you are on to something @lujia. This idea of everyone being simultaneously care giver and care receiver is the cornerstone of OpenCare.\xa0The commercial is cute too!', u'entity_id': 24875, u'annotation_id': 9362, u'tag_id': 1296, u'entity_type': u'comment'}, {u'quote': u'What comes through your posts beautifully, @rachel, is the dimension of knowledge, experience and care (in the sense of being careful, rather than the other vital sense of caring for each other). The technology is secondary. Your posts here suggest that attention to the detail in the process is much more significant than, say, the difference between using a domestic pressure cooker rather than an official autoclave for sterilization.', u'entity_id': 38977, u'annotation_id': 11727, u'tag_id': 1297, u'entity_type': u'comment'}, {u'quote': u'Nous l\u2019entendons partout : nous sommes dans une p\xe9riode transitionnelle, qu\u2019elle soit positive (\xe9mergence d\u2019\xe9conomie collaborative, renouveau des mod\xe8les low-tech, cr\xe9ation d\u2019outils num\xe9riques de gestion d\xe9centralis\xe9e, \u2026) ou n\xe9gative (\xe9mergence d\u2019organisations extr\xe9mistes, renouveau des partis populiste-fasciste, cr\xe9ation de tactiques num\xe9rique de propagande,\u2026) nous voyons que l\u2019importance de se retrouver sous un arbre de valeur est d\u2019une grande importance en ce moment. Les outils sont l\xe9gions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration d\xe9centralis\xe9s : Github. Tous ont une arm\xe9e de fans, mais tous ont le m\xeame probl\xe8me : si il n\u2019y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau d\xe9cor. C\u2019est comme donner des outils de permaculture \xe0 un fermier industriel : si il ne voit pas que les valeurs partag\xe9es sont un atout majeur, il restera avec ces m\xe9thodes classiques.', u'entity_id': 33747, u'annotation_id': 9371, u'tag_id': 1297, u'entity_type': u'post'}, {u'quote': u"I read the enspiral post, it was interesting- \xa0thanks for sharing! You're right, it's not the tools but\xa0people. There's", u'entity_id': 33793, u'annotation_id': 9370, u'tag_id': 1297, u'entity_type': u'comment'}, {u'quote': u"You are \xa0a designer \u2013 you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some\xa0job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you'll find it!", u'entity_id': 15984, u'annotation_id': 9369, u'tag_id': 1297, u'entity_type': u'comment'}, {u'quote': u'I really liked this slogan on your website, team Medic Mobile!\nI don\'t know if "community health worker" is a term you use for both official and volunteering members (it appears they are different from professionals though)\xa0but the fact they they are real power users of the technology and take the message to local governments seems like quite an asset. Is there professionalization happening and are the ranks of\xa0CHWs growing ..? I suspect there \xa0must be other kinds of rewards other than intrinsic, given that these people are crucial in providing care and their work is largely underpaid. Very curious, thanks for the response.\nThis story could be interesting for @Marc_Elva , @rem_it , @Maria ,\xa0@Michel .', u'entity_id': 7961, u'annotation_id': 9368, u'tag_id': 1297, u'entity_type': u'comment'}, {u'quote': u'Just to give an example: \xa0My mother suffered from a slipped disc so passing the vacuum cleaner was a low back pain for her. As a good boy I stated: "When I grow up mom, I\u2019ll invent a cleaning robot to do the job for you". Someone beat me to it - the cleaning robot is a reality - it sells well, and substitutes the socializing cleaning woman once offered to the elderly. I see now that a cleaning robot is not what a mother really wants. She just wants a good boy saying: \u201cmom, I\'ll do that part of the cleaning with you\u201d, and do it right away.', u'entity_id': 516, u'annotation_id': 9367, u'tag_id': 1297, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 17091, u'annotation_id': 9366, u'tag_id': 1297, u'entity_type': u'comment'}, {u'quote': u"The main takeaway from my experience of several years is this: it's not about the tech.\xa0The tech is important, of course, but it's the culture that the community builds around using the tech that drives the process. One of the most remarkable guys who hangs out Edgeryders, @johncoate , used to work for The WELL, the world's very first online community that was intentionally designed as such. He sent me a screenshot of the opening screen:", u'entity_id': 14196, u'annotation_id': 9365, u'tag_id': 1297, u'entity_type': u'comment'}, {u'quote': u'skill, expertise and creativity are the scarce resources of development.', u'entity_id': 6759, u'annotation_id': 9364, u'tag_id': 1297, u'entity_type': u'comment'}, {u'quote': u'We realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative.', u'entity_id': 1710, u'annotation_id': 9363, u'tag_id': 1297, u'entity_type': u'post'}, {u'quote': u'Since they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).', u'entity_id': 26014, u'annotation_id': 9374, u'tag_id': 1298, u'entity_type': u'comment'}, {u'quote': u'People first, mission second.', u'entity_id': 20040, u'annotation_id': 9373, u'tag_id': 1298, u'entity_type': u'comment'}, {u'quote': u'\u201cWe, the people who work every day, who think we \u2018don\u2019t have time\u2019 - we are the only ones who can do this,\u201d said a Woodbine co-founder. \u201cNo one\u2019s going to do this for us\u2014no politician, no technological innovation, no international agreement. If we want a different future, we are going to have to make it, from where we are and in every place.\u201d', u'entity_id': 5886, u'annotation_id': 9372, u'tag_id': 1298, u'entity_type': u'post'}, {u'quote': u'When it comes to DIY solutions to health- and social care problems, there is a key tension between asking for permission and asking for forgiveness. Who/how can and should we convene around finding legal/administrative hacks for existing DIY solutions to health- and social care problems?', u'entity_id': 5463, u'annotation_id': 9375, u'tag_id': 1299, u'entity_type': u'post'}, {u'quote': u'Personal Care Assistant', u'entity_id': 34574, u'annotation_id': 12108, u'tag_id': 2307, u'entity_type': u'post'}, {u'quote': u"Alessandro,\xa0I'm also interested in approaches where the data entry\xa0becomes organic, integrated in your routine, almost happening in the\xa0background. i.e. a wonderful UI UX.\xa0\nI will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I\u2019ll definitely like to deliver a smooth user experience.", u'entity_id': 24217, u'annotation_id': 9378, u'tag_id': 1300, u'entity_type': u'comment'}, {u'quote': u'The app \u201cClue\u201d (menstrual cycle tracking), is a very good example in this terms, it doesn\u2019t\xa0do much next to allowing women to structurally note down dates and\xa0symptoms, yet it is a powerful tool of awareness.', u'entity_id': 20905, u'annotation_id': 9377, u'tag_id': 1300, u'entity_type': u'comment'}, {u'quote': u'he increasing knowledge through personal sensors, and how this form of open learning in a digital era can be applied to an area of shared concern \u2013 the environment.\xa0 the meeting will focus on the ubiquity of and the knowledge\xa0to be gained from personal sensors, and how this information\xa0can be applied to address issues of real concern.', u'entity_id': 5491, u'annotation_id': 9376, u'tag_id': 1300, u'entity_type': u'post'}, {u'quote': u'Further to your question, each commuinty in CT alone, nevermind SA, responds to these formats differently as they each have a varied social dynamic on their own. So a one-size-fits-all simply does not work in this context, hence us wanting to test out methods that are relative to the communities we work in. Additionally, commuities (esp townships) suffer from very different public health concerns, e.g. in Delft the issue we worked on was cardiovascular disease as a majority of persons are suffering from this wheres the community 2 km from my called Vrygrond TB is the main concern. Language variation is a big issue as its not homogenous.', u'entity_id': 33824, u'annotation_id': 9380, u'tag_id': 1301, u'entity_type': u'comment'}, {u'quote': u'Many blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight. \xa0The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities.', u'entity_id': 701, u'annotation_id': 9379, u'tag_id': 1301, u'entity_type': u'post'}, {u'quote': u"The last two weeks we made some research at the Refugee Camp at ICC Messe Berlin. The very nice volunteer Berivan showed us around and we had the chance to talk directly with the people.\nThe first time we visited I was surprised how \u201egood\u201c the atmosphere was. I somehow always thought a refugee camp would be a very sad place, but children were running around playing and everyone was kind of open and nice to each other (from my point of view).\xa0\nThe ICC Messe is a former congress centrum which was recently rebuilt\xa0to be a refugee camp. The Big Main Hall is segmented with thin white walls into something like 40 rooms that look like roofless boxes. Instead of doors there are blankets and towels covering the entrances. There are no windows; in this main Hall the light comes from tubes in the ceiling.\xa0Inside of each room there are 4 bunk beds, so in total 8 people per room\xa0(familys are usually separated and live in private rooms, also: the rooms are separated by gender).\nUsually the rooms don't have any kind of furniture inside, but the one we were sitting in had a big picnic table and a bench and also a bunch of office chairs. We got offered very sweet black Tea in plastic cups and started sharing stories.\xa0\nFirstly we asked how people organize themselves in the room.\nThe Camp is designed for people to stay around three months, but most of the people are staying six or more. There are only the bare necessities provided. For example there are no possibilities to unpack the backpacks or suitcases, which are probably unpacked since the beginning of the journey. Thats why the people find solutions, for example they pull out nails from the wall and hang their cloth on these nails. Or they found a piece of metal string which they also used to hang cloth from. There are also some card boxes used as bed table and chest. Hussam (who is diligently learning German) pointed at one of the card boxes saying \u201eK\xfchlschrank\u201c. We were laughing but it was true! tomatoes, cans of beans and a lot of eggs were stored\xa0there. Also under the bed was a lot of food (maybe the darkest and coldest spot in the room). The reason for that is that they don't always like food by the caterer and of course you get hungry between the official \u201emeals\u201c. They boil the eggs in a water cooker by the way!\xa0\nAnother interesting observation was a little plastic cup full of washing powder.(they usually give the dirty cloth away to the washing and get them back clean) Hussam told us that he likes his shirts to be without creases and because there is no way to iron,he washes them with his hands and drys them in the room. That was eye opening for me because, yes they might have nothing but they have dignity and preferences! they start a living.\nAlso very interesting is that in the bunk beds the bottom bed is the preferred bed because they can build a little privacy by hanging towels and sheets at the upper bed. The upper bed is always dependent on the main light system which is switched off at 11 in the night.\nBerivan told us that in one room they build constructions out of a broken bunk bed so that also the upper bed could shield from the light.\nAnother very striking construction was a piece of wood sticked to the wall with duct tape which was supposed to be a smartphone shelf, to watch movies at night.\nAlso they put pictures from magazines on the wall to make the atmosphere a little more cosy.\nBut still even if they find the possibility to hack something there is a lot of stuff just flying around in the room.\nThere was a lot of creativity to make the most out of the given, bit still no tools or materials. Berivan told us they used to give out tools, but because they never came back so there are no tools anymore.\xa0What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?", u'entity_id': 681, u'annotation_id': 9385, u'tag_id': 1302, u'entity_type': u'post'}, {u'quote': u"The device has been designed to allow (and/or complement)\xa0simple shoulder and elbow movements (namely: shoulder abduction/adduction, shoulder flexion/extension, elbow\xa0flexion/extension). The main idea behind its development is that of enabling its use directly at people's homes, in order to allow intensive sessions directly in activities of daily living.\xa0As such, it could be used in several scenarios, from rehab to assistance. The main differentiator wrt such scenarios would/could (mainly) be the user-interface.\nIn the simplest\xa0case, the device could be programmed (by a physician, physiotherapist etc.) in order to mimic/repeat a predefined set of motions over and over again in order, for example, to avoid the undesired consequences of limbs immobilization (contractures, poor blood circulation etc).\nIn a rehab setting, for example post-stroke, the exoskeleton's motions could be derived by decoding user's intention via physiological signals (mainly EEG, EMG). In this case the basic idea would be to allow the user to complement or slowly re-gain control over his flaccid/weak arm and discontinue its use once the user does not need it any longer.\nIn an assistive setting, for example post spinal cord injury or in myopathies, the exoskeleton's motions could be derived as before or chosen from a simple interface (e.g. smartphone, joysticks etc.) in order to provide assistance-as-needed, whenever the user wears\xa0the device.\nIn a case like the one you've mentioned the device could indeed be used, not to help but rather to (selectively) resist the movements. By customizing some parameters to the user's needs/residual abilities, one could enable\xa0specific trainings in order to work on specific ranges of motions, torques, joints/muscles combinations etc. Such parameters/programs could be also updated by a physician, or dynamically (by the device itself) by inferring correlates of muscle-fatigue, achievable range of motions etc.\nIn all the previous scenarios, as specified by @Noemi, data related to the user's progress could be collected and analyzed, for the sake of monitoring and improving the therapy itself.", u'entity_id': 13646, u'annotation_id': 9384, u'tag_id': 1302, u'entity_type': u'comment'}, {u'quote': u'personalized', u'entity_id': 21728, u'annotation_id': 9383, u'tag_id': 1302, u'entity_type': u'comment'}, {u'quote': u'How can we make it personal though? Are people still motivated if every Box looks the same in the end?', u'entity_id': 21499, u'annotation_id': 9382, u'tag_id': 1302, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 9599, u'annotation_id': 9381, u'tag_id': 1302, u'entity_type': u'comment'}, {u'quote': u'I did my thesis on correlations between phenotype characteristics and seed yield (+ genetic diversity) in red clover. I know first hand the horrors of measuring the size of 10.000 tiny flowers, tagging genetic barcodes and the weeks of zombie computer work this brings. Luckily, research institutions have students and interns to do this stuff . You make a very valid point: phenotypic research can benefit a lot from citizen science.', u'entity_id': 18972, u'annotation_id': 12967, u'tag_id': 1305, u'entity_type': u'comment'}, {u'quote': u'The fact that Phenotyping is relatively simple could lead to a competitive advantage for bottom-up initiatives against big corporations, and more\xa0in general, could allow the involvement of a much wider group of people in research processes and their benefit.', u'entity_id': 18966, u'annotation_id': 9391, u'tag_id': 1305, u'entity_type': u'comment'}, {u'quote': u'#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.\xa0\nreHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming.\nOur beneficiaries are all those people who needs to have an experience feedback concerning the hand movements.\nreHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance.\nReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.\nreHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.\xa0\nTo define our project we didn\u2019t started from a theoretical concept. We started to make the prototype and to test it.\xa0\nThe development of reHub working prototype has been at the heart of our design process.\nAs described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design.\nAfter testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove\u2019s collected data through a graphical interface and cartesian charts.\nWe are looking for our final user(s), who will try our product and help us develop different options:\n\nSport\nGaming\nEducational\nMedical \xa0\n\nWe want to built a community and start a business strategy.\nWe will publish tutorials, kits and software to make your glove.\nEverything to improve the glove solution.\nWe want to develop 4 different kits to sell:\n\nwith single sensors\xa0\nonly the electronics\nglove tailored\ncomplete of all\n components\n\nWebsites & Social\nwww.rehub.pro\nwww.facebook.com/rehubglove', u'entity_id': 33751, u'annotation_id': 9400, u'tag_id': 1307, u'entity_type': u'post'}, {u'quote': u"Hubotics was presented at the OpenCare Deep Games event at CERN earlier this year. As it's early\xa0in the development stage, modifications of design are being achieved to maximize customizability and accessibility to a large community in need. \xa0For the full article here:\xa0 here:\xa0https://goo.gl/vFqiY3", u'entity_id': 21506, u'annotation_id': 9399, u'tag_id': 1307, u'entity_type': u'comment'}, {u'quote': u"The device has been designed to allow (and/or complement)\xa0simple shoulder and elbow movements (namely: shoulder abduction/adduction, shoulder flexion/extension, elbow\xa0flexion/extension). The main idea behind its development is that of enabling its use directly at people's homes, in order to allow intensive sessions directly in activities of daily living.\xa0As such, it could be used in several scenarios, from rehab to assistance. The main differentiator wrt such scenarios would/could (mainly) be the user-interface.\nIn the simplest\xa0case, the device could be programmed (by a physician, physiotherapist etc.) in order to mimic/repeat a predefined set of motions over and over again in order, for example, to avoid the undesired consequences of limbs immobilization (contractures, poor blood circulation etc).\nIn a rehab setting, for example post-stroke, the exoskeleton's motions could be derived by decoding user's intention via physiological signals (mainly EEG, EMG). In this case the basic idea would be to allow the user to complement or slowly re-gain control over his flaccid/weak arm and discontinue its use once the user does not need it any longer.\nIn an assistive setting, for example post spinal cord injury or in myopathies, the exoskeleton's motions could be derived as before or chosen from a simple interface (e.g. smartphone, joysticks etc.) in order to provide assistance-as-needed, whenever the user wears\xa0the device.\nIn a case like the one you've mentioned the device could indeed be used, not to help but rather to (selectively) resist the movements. By customizing some parameters to the user's needs/residual abilities, one could enable\xa0specific trainings in order to work on specific ranges of motions, torques, joints/muscles combinations etc. Such parameters/programs could be also updated by a physician, or dynamically (by the device itself) by inferring correlates of muscle-fatigue, achievable range of motions etc.\nIn all the previous scenarios, as specified by @Noemi, data related to the user's progress could be collected and analyzed, for the sake of monitoring and improving the therapy itself.", u'entity_id': 13646, u'annotation_id': 9398, u'tag_id': 1307, u'entity_type': u'comment'}, {u'quote': u"Very interesting. I had a complicated above elbow fracture resulting in 70% muscle wastage, reduced movement of elbow joint and fingers, and removal of the funny bone nerve. I found using plastic bottles filled with water as weights very useful. Easy to change the weight and squeezing the bottle as I lifted was effective at getting the work to where it's needed (and free). In what ways do you think the product in the picture would work better than a plastic bottle? Strenghtening multi-directional movement?", u'entity_id': 8386, u'annotation_id': 9397, u'tag_id': 1307, u'entity_type': u'comment'}, {u'quote': u'Last October, during the Makerfaire in Rome, the opencare WeMake team was exhibiting in front of project Hubotics! \xa0\xa0A DIY solution that provides customized physiotherapy at home. \xa0Composed of 3D printed parts, and a simple mobile app, the solution works in a way that makes it easy to stimulate muscles and nerves of the patient who needs therapy, with customized motion and power. \xa0\xa0\nA wonderful family was in the Hubotics booth. \xa0I had a chance to interview Luca, the project co-founder, who was demonstrating the project and openly shared the story of his solution below.\nThe project is still in development and is in need of testers, read the story and see if you can take part in the project in its current status.\n1. \xa0How did you start the project? What were your motivations?\nThe Hubotics project started in late 2013. At that point I was about to finish my Master\u2019s studies and I wanted to add a practical side to my technical skills as an engineer and as a passionate DIYer by developing accessible technologies and aids which could have helped improving independence for people suffering from motor disabilities. Actually, the reason why I decided to study engineering and became a builder and hacker stemmed from my personal experience with my sister Chiara, who suffers from a motor disability.\nI remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the \u201clatest\u201d rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one\u2019s own body is one of the most gratifying experiences everyone could hope for, that\u2019s how the idea of creating an exoskeleton to be used in everyday\u2019s life was born.\n2. Did you start alone? How long did it take to develop the initial prototype? How was it funded?\nAround that time, I started speaking about these ideas with Roberto, a friend with whom I had studied between Torino and Milano. Together, we started brainstorming and discussing and we finally converged on the idea of developing a low-cost, 3D printed exoskeleton for rehabilitation and assistance of upper-limbs, directly at people\u2019s homes.\nThe idea was proposed at the Telecom Italia WCAP accelerator in Catania that believed in the project and decided to fund us. This allowed us to buy the 3D printers and the components to build and iterate on our ideas and prototypes. The first reliable prototype of the device, finalized in one year, consisted of a wearable, smartphone-controlled, elbow exoskeleton.\nAfter showing the device at the MakerFaire 2015 in Rome and gathering plenty of positive feedback, we understood that the project had plenty of potential and decided to keep working on it.\nWhat is your current status now?\nToday, together with Roberto and Chiara, we keep on improving our devices and iterate on the designs in order to achieve a concept as usable and useful as possible while maximizing customizability and accessibility. Our latest device consists of an exoskeleton with 3 active degrees of freedom for controlling the shoulder abduction/adduction, shoulder flexion/extension and elbow flexion/extension of its wearer.\nThe device can be controlled by means of a smartphone app or by a program with predefined motions/tasks.\n5. How do you see it moving forward? What kind of help/expertise/data that is missing for moving to a next phase?\nOur main objective in the near future is running experiments with potential users of the exoskeleton and their relatives, in order to gather further feedback and improve our devices based on this.\n\xa0Additionally, we are brainstorming on possible models that would allow the project to keep its philosophy of openness and accessibility while making it economically sustainable. For example, how to fund the project in order to promote further development? How to enable open/low-cost and customizable solutions capable of reaching end-users? How to ensure that these devices would work (and keep working) at users\u2019 houses (services?), all these are open questions that we will be working on for the next phase.', u'entity_id': 806, u'annotation_id': 9396, u'tag_id': 1307, u'entity_type': u'post'}, {u'quote': u'Wir Bauen Zukunft (translates We Build Future) aka \u201cthe Nieklitz crew\u201d is a collective that in the beginning of 2016 bought 18 hectares of land with a loan from a generous private person. This was previously a biology park, a multi million euro technical project of a local architect in the late 90s which failed to bring in enough visitors or people to fill spacious workshops. The ensemble had severely deprecated  due to lack of maintenance and use. Since 2016, the Nieklitz crew rebuilt most of it, with a lot of attention for craft and design. It is quite an experience to walk between The Hive main hall and kitchen, the Scent House and House of Flowers, all equipped with a few dozen beds, toilets, indoor and outdoor shower(s); or to walk the green paths between large workshops and storage spaces, old trailers, camping and camp fire spots. See it for yourself:', u'entity_id': 36387, u'annotation_id': 11700, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'We need a good outline for the theme + fitting sessions. I tentatively assign this task to Woodbine because it seems this is up their street. More than a space where for co-habitation or learning together, they are involved in running a place where activities are directed at providing care - preventative, through peer learning and building capacity which system healthcare lacks.', u'entity_id': 6409, u'annotation_id': 9428, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'As we navigate through different layers of space - personal, communal, public, private; physical or immaterial - we find that each has its own unique dynamic that is conditioned by ownership, access and attitudes of the people inhabiting them. How we live with one another and how we make sense of the interactions when factoring in power relations, newer arrivals, meshing of spaces or other elements that constantly challenge the basis of our relationships?\nYou can do this mission in either of two ways:\n\nImagine a person moves to your town or city and tells you that they would like to hangout somewhere where they could make new friends. Where would you send them and why? What information or advice would you give them? What knowledge or skills do you think you would have found useful to settle in faster the last time you moved to a new place?\n\nAlternatively:\n\nDo you consider yourself an indigenous person? Why or why not? Interview someone who has moved to the city or town you live in, and ask him or her about their experience of the place. How does it compare to yours?\n\nDig deeper into the topic\n\nRead what other Edgeryders are saying -\xa0Andrei\u2019s At the edges of conflict and mixed identity\xa0makes a strong point on what it\u2019s like to live at the crossroads and clashes of cultures. His vision is that of peacebuilding: "hate speech on both sides [of Transnistria] is still louder than the voices of peace"\n\nGood for you:\xa0If you\u2019re an indigenous person, reflecting on this can help you learn how to welcome new arrivals; if you\u2019re a newcomer, reflecting on this can help you learn the tricks to accommodate to the new home and make the transition smoother. \xa0\n\nGood for everyone:\xa0Your contribution can educate others to cherish new places and out-of-the-box relationships and open up to the value of communities that are dynamic, adaptable or rich in diversity.\nCount me in! How do I participate?\nIt\u2019s easy!\xa0submit your contribution\xa0by sharing your story.\nIf you\xb4re not already signed in to the Edgeryders platform you can do it\xa0here. Remember to\xa0get the bigger picture on\xa0Living together.', u'entity_id': 867, u'annotation_id': 9427, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.', u'entity_id': 25049, u'annotation_id': 9426, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 834, u'annotation_id': 9425, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u"Hi @SaraAsnada I'm curious how did you get your first school? Did you have a building where you could organise things?\xa0Currently,\xa0running more schools and activties means that you have different places where people meet to learn?\xa0\nI'm asking because you posted in Policies of Care - did the City help in the beginning or did you have your own assets?", u'entity_id': 16570, u'annotation_id': 9424, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14908, u'annotation_id': 9423, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb).\nSince then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community.\nThe platform with shared ownership and control will be non-extractive, inclusive and cooperative.', u'entity_id': 829, u'annotation_id': 9422, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 29086, u'annotation_id': 9421, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'Currently delivered on a volunteer basis for proof of concept, our intent is to progress towards a cultural space and \u2018crisis cafe\u2019 on a social enterprise model, with a welcoming cafe-type front-of-house drop-in space that can be used as an open studio and learning space, with a supportive backstage of more intensive interventions, therapies and supports for those people in emotional distress. Our model is grounded in the value and authenticity of provision of supports and services that are delivered by people with the direct personal experience of the situations in question, and the expressed need based on our research for appropriate creative outlets that support emotional wellbeing and generate meaning and community for the participants.', u'entity_id': 757, u'annotation_id': 9420, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'Some interesting facts from his paper:\n-social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands\n-7 % of houses totally empty\n-1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years\nFrom squatting to a participatory process -\xa0 a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don\'t have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.\xa0\xa0In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space!\nIt\'s an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123:\nProfit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their \'illegal\' status it isn\'t praised.\xa0Loic showed a detailed distribution of the types of spaces - at each floor you\'d have facilities, workshops, library + distribution of private and communal space. \xa0Important detail: Stairs are used instead of working elevators as a social control mechanism.\xa0\nLoic is trying to give more visibility to housing solutions - it\'s not easy, he says, and it\'s important to make good contact with the owner! "First you squat, then you talk" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail:\xa0loicdesiron@gmail.com', u'entity_id': 791, u'annotation_id': 9419, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 9418, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u"Five years later and having had some breakthroughs as we think together about how to live and work meaningfully in the 21st century, it feels it's now time to look for a physical home. We call it The Reef and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time.\xa0There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?", u'entity_id': 6850, u'annotation_id': 9417, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 9416, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 657, u'annotation_id': 9415, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and caf\xe9s. Still we have collect more but this will happen as soon as we get it expanded. We work on it.', u'entity_id': 16457, u'annotation_id': 9414, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'Our App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Caf\xe9s and Eventspaces be a part of our project. So for example we lead a participant to a caf\xe9 and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience.\nSo our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment.\nMilan/Newcomer', u'entity_id': 699, u'annotation_id': 9413, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'"that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved in processing the emotions experienced in\xa0that place"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.', u'entity_id': 21365, u'annotation_id': 9412, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'It feels like a\xa0given that two people who are\xa0in grief may find solace in sharing their\xa0real experience and connecting.\xa0\xa0And yet, to generalise,\xa0Western communities often put empahsis on usefulness in society and direct\xa0those\xa0exhibiting signs of mental distress to simply "be OK"\xa0/ go on medication / fix themeselves\xa0-\xa0\xa0I totally agree with the point you are bringing out that\xa0"the community" is often woefully\xa0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\xa0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\xa0Perhaps I\'m thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\xa0that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved in processing the emotions experienced in\xa0that place. I\'m aware this is a poetic notion but I think\xa0various imaginative\xa0re-framings\xa0of the issue of mental health\xa0is what\'s needed. Maybe this would only work as a\xa0three way conversation with someone trained and with really\xa0clear guidelines around use but my thinking here is that what\'s needed is not this expert / patient relationship but two humans sharing different experiences of living in a similar\xa0place.', u'entity_id': 16456, u'annotation_id': 9411, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u"Co-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?", u'entity_id': 13198, u'annotation_id': 9410, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'Many care projects need physical spaces, but buildings have an especially top-heavy regulatory regime in many countries. Rather than ask for authorizations, some groups find it easier to start \xa0by illegally squatting their building of choice, then negotiating with the owner. The act of squatting creates a problem for the owner; an agreement with the squatters can be presented as the solution.', u'entity_id': 5913, u'annotation_id': 9409, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'The secret of living decently in the city is to manage space and time differently, but she is aware that it becomes more difficult. Public space isn\u2019t anymore a space for everybody, but a space for nobody. A cleaned-out space that only looks pretty. Because our fascination for more sterile environments we lost the skills to interact with each other. Who needs to interact with your neighbour if you have all the space you need inside your private home. Living small could bring back the necessity of interaction and borrowing stuff from your neighbours, helping create a much-needed social fabric to your neighbourhood.', u'entity_id': 745, u'annotation_id': 9408, u'tag_id': 1308, u'entity_type': u'post'}, {u'quote': u'cheap space enables trying out stuff. There is a clear conflict between the interest of innovators and those of real estate owners. This is surfacing in other mission reports on Egderyders as well.', u'entity_id': 6759, u'annotation_id': 9407, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u"What about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.", u'entity_id': 10261, u'annotation_id': 9403, u'tag_id': 1308, u'entity_type': u'comment'}, {u'quote': u'Road map / science\nFederica and Bram will put their heads together to come up with a road map for the science and lab work. Concrete milestones would make the plan better. A first step is already clear: replicating the Oakland work with the plasmids we receive. Although our work can be more useful on downstream processing, this way we gain experience, prove reproducibility and have a reference point for when we change the construct. After that, the roadmap and milestone should offer us some focus, as there are many options to test (different organisms, different linkers, microfluidics optimization, \u2026)\nThere are already plenty of papers on the Google Drive, thanks to the work of the teams in Oakland and Sydney.', u'entity_id': 7979, u'annotation_id': 9432, u'tag_id': 1309, u'entity_type': u'comment'}, {u'quote': u'ab work planning for when the plasmids arrive', u'entity_id': 6373, u'annotation_id': 9431, u'tag_id': 1309, u'entity_type': u'post'}, {u'quote': u'Dear @iffat_e_faria, its very impressive and motivational efforts. All around the world, people are gearing up for earth day. Started in 1970, this designated day of April 22 has become an annual reminder of our responsibility to be good stewards of the Earth. You did excellent and contributed into a healthier Earth in multiple ways with plant a garden, which committed to reduce, reuse and recycle.\n\nGood and keep it up...... All the best for your future endeavors \n\nDr. Saeed Ahmad Qaisrani', u'entity_id': 26066, u'annotation_id': 12968, u'tag_id': 1310, u'entity_type': u'comment'}, {u'quote': u'Dear @WinniePoncelet, I feel really glad to know that there is someone at the other part of the world , thinking the exact same process to make a positive change in the environment. I really felt good about the whole story from the beginning to collect them from a play and to saving them and nurturing. The efforts, time and energy you have given behind this , is truly amazing. I hope there will be more to this story, 4 other loving people like you will take those beautiful trees away and give them the proper care that they deserves. I hope to see more tiny apple fruits on the branches , and let others knoiw tbat they have life too, the strong will of surviving and more.\nThank you for comnmenting here, means a lot.', u'entity_id': 25251, u'annotation_id': 9435, u'tag_id': 1310, u'entity_type': u'comment'}, {u'quote': u"On September 8th 2016, I have initiated an online campaign called \xa0#PlantAtreeChallengeBD\u201d The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It\u2019s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem.\nAlong with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.\nPrimarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each \xa0other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10.\nTo bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor\u2019s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO\u2019s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on\xa0increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first carbon negative country.", u'entity_id': 848, u'annotation_id': 9434, u'tag_id': 1310, u'entity_type': u'post'}, {u'quote': u"In Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader.\nFive seems to be the magic number, coincidentally I planted five trees\xa0myself about 1,5\xa0years\xa0ago. Here's the story. The five apple trees were a\xa0leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:", u'entity_id': 24340, u'annotation_id': 9433, u'tag_id': 1310, u'entity_type': u'comment'}, {u'quote': u"The plasmids need to be put in bacteria. Therefor, we have to make bacteria 'competent' (= able to take up 'naked' DNA) or we need to buy 'competent' bacteria. Buying is more expensive but more efficient.", u'entity_id': 24451, u'annotation_id': 9437, u'tag_id': 1311, u'entity_type': u'comment'}, {u'quote': u"Got some news that CCL is ready to ship us the plasmids within the week, and maybe the organisms. @ritavht has been looking up the stuff for growing up the organisms if they come as a culture. Now there's also the possibility that we'll start from the plasmids, so we should prepare for that as well.\nWithin the week means I'll be out of action due to medical reasons. We can use this as a strength as I'll be home all day for sure to receive the samples . Is anyone up for leading the first rounds of lab work to get going with the plasmids/cultures?\nWe can use this thread to further coordinate the lab work.\nSome pings for sharing the news:", u'entity_id': 6325, u'annotation_id': 9436, u'tag_id': 1311, u'entity_type': u'post'}, {u'quote': u'Well, during the last ten years our economy has\xa0been completely \u201cplatformed\u201d: the largest taxi company doesn\u2019t own any cars\xa0(Uber), the world\u2019s biggest media owner creates no content (Facebook) and so on. In almost every sectors a single player with a \u201cplatform business model\u201d dominates.\nThere are two main problems with this:', u'entity_id': 829, u'annotation_id': 9438, u'tag_id': 1312, u'entity_type': u'post'}, {u'quote': u'-Discussion starting generally, and then what platform can become faircoop? PLATFORM AS A COMMON, community as a shareholder; hopefully it will be ready to launch!', u'entity_id': 6372, u'annotation_id': 9458, u'tag_id': 1315, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 773, u'annotation_id': 9457, u'tag_id': 1315, u'entity_type': u'post'}, {u'quote': u'In this comment https://edgeryders.eu/en/comment/27263#comment-27263 , I highlight a strategy for the activation of the platform.\nBasically, for and Airbnb-like platform is good to use this system because you don\'t have to maximize the benefit of the peer producers (as it should be for Uber for example). You can maximize the benefit for the society (for this reason fairbnb should be a common, not owned just by certain users e.g. hosts).\nThere are many reasons why Airbnb fit and on why it should be the platform to target in order to attempt to change the digital economy.\nI have been thinking and studying a lot and I would love to write about it. I made some months ago the structure for a green paper call "Overthrowing Power, one Platform at a Time" https://docs.google.com/document/d/1aeZAdKdbF1N2hexDO8VMqlzN6XUofumpQW2KTAgHwPw/edit?usp=sharing .\nif someone is interested in developing this, it would be a pleasure to do it .\nHere there are some articles, that I found interesting, on platforms (related to the technical part and on growth hacking/critical mass in particular) https://workflowy.com/s/fRXqUUze22\nWe also did an Horizon2020 call (we didn\'t win) but is a huge work and I can share it if you want.', u'entity_id': 11398, u'annotation_id': 9456, u'tag_id': 1315, u'entity_type': u'comment'}, {u'quote': u'would like to propose a discussion panel for the OpenVillage Festival 2017.\nDuring the last six months, I have been attending almost all the event on Platform Cooperativism in Europe.\nEven tough is exciting what is happening, there isn\'t a model that reached a dimension that can be compared to any dominant platform, and some points are missing from the global discussion.\nPlatform Cooperativism promotes shared ownership among users of the platform in order to create non-extractive alternatives to current platforms.\nThe digital economy produces enormous amounts of wealth that become profit (often non-taxed) for few billionaires. This money could be used to power the welfare state, nonprofit projects or a collaborative economy.\nIn the last 5/10 years, our economy has been "platformed."\nThe "disruption" didn\'t allow proper reflection and to take action to create the most desirable platforms for users.\nWe have enough data on the externalities of this platforms and the extent of the impact on our economies, it\'s now possible to analyze what brought us here, the opportunity that we should investigate and the challenges that we need to face.\nBeing part of the Fairbnb project helped me to focus on important questions related to the digital economy.\nHow can we create non-extractive alternatives platforms that can compete with the existing one?\nIs it possible to create platforms that are "commons"?\nCan we use the wealth unlocked by this technology to fund non-profit community projects?\nHow can an organization be both efficient and competitive without losing in inclusiveness and openness?\nTo answer this questions, there are many guests that it would be useful to invite:\nInternet of ownership: The Internet of Ownership is a resource for the emerging online democratic economy. Its purpose is to advance platform cooperativism\u2014a vision for online platforms that share democratic ownership and governance among the people who rely on them, especially those who contribute their labor and personal data.\nGuest: Nathan Schneider\nFairmondo: Fairmondo wants to create a scalable fair ecommerce platform and is one of the pioneering platform cooperatives with an innovative redistribution scheme that honors unpaid contributions.\nGuest: Felix Weth\nEcosia: Is a search engine that plants trees with the value that you generate through your digital actions\nGuest: Christian Kroll\nFaircoop: Fair.coop is an open global cooperative, self-organized via the Internet and remaining outside nation-state control. Its aim is to make the transition to a new world by reducing the economic and social inequalities among human beings as much as possible, and at the same time gradually contribute to a new global wealth, accessible to all humankind as commons.\nGuest: Enric Duran\nPlatform Design Toolkit: Is a set of open-source tools to design digital and non-digital platforms with ease.\nGuest: Simone Cicero\nOther Guests: Sangeet Paul Choudary is a platform strategist, probably one of the most skilled person on this planet in understanding platform\nOf course, other founders of Fairbnb could join the discussion and hopefully we could launch the platform during the event.\nWith this broad variety of guests, we will have enough competencies to generate a debate that could be fascinating and could help to further the global discussion on those important thematics.', u'entity_id': 6300, u'annotation_id': 9455, u'tag_id': 1315, u'entity_type': u'post'}, {u'quote': u'OUR PROGRESS\nWe took part in the Mozilla Global Sprint earlier this month with a focus on the P2P side of the project. However, for now we think the priority should really be to get an advocacy platform up and running as soon as possible in the hope that we might still be able to have some influence on agenda setting for FP9. In the short term we hope soon to secure funding to gather 4-5 European community/project organisers together for a co-design sprint to lay the foundation for the network \u2013 describe our identity, values, mission, begin to craft our advocacy arguments and roadmap next steps \u2013 and build a basic website.', u'entity_id': 6427, u'annotation_id': 9454, u'tag_id': 1315, u'entity_type': u'post'}, {u'quote': u"see a couple of parallels between the service platform and a couple of initiative that run in the UK. I wonder if there's some extrapolation that can be taken from them.", u'entity_id': 24694, u'annotation_id': 9453, u'tag_id': 1315, u'entity_type': u'comment'}, {u'quote': u"Offering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can\xa0choose to 'bind' their room to a specific cause, donating most of the returns\xa0to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?", u'entity_id': 23131, u'annotation_id': 9452, u'tag_id': 1315, u'entity_type': u'comment'}, {u'quote': u'The idea is to maximize the intrinsic and extrinsic motivation for users and let everybody be connected with the goal of the platform, in particular, projects will allow the organization to grow, scale and create a widespread mass of users.\nBonding our initiative to hundreds of others will create that crowd-powered process that is needed to achieve the critical mass without relying on VC money.', u'entity_id': 20627, u'annotation_id': 9451, u'tag_id': 1315, u'entity_type': u'comment'}, {u'quote': u"I think a platform like fairbnb\xa0will be a great alternative to those who don't agree with some of Airbnb's practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?", u'entity_id': 14269, u'annotation_id': 9450, u'tag_id': 1315, u'entity_type': u'comment'}, {u'quote': u'Competition between a non-extractive and an extractive platform is somehow like David against Golia.\nI think the key is to pick the right platform and to craft the perfect strategy that enhances intrinsic and extrinsic motivation for the users.\nFor some reason (community-driven, aggregation platform, P2P are ordinary people, it produce lots of wealth by unlocking unused resources) I see Airbnb as the most suitable.', u'entity_id': 10667, u'annotation_id': 9449, u'tag_id': 1315, u'entity_type': u'comment'}, {u'quote': u'Thanks for the pointer, Alberto. Actually @trythis was the inspiration for the Rasoberry Pi local media servers after the Nepal earthquake last year, and this way also for Pocket University. Lots of inspiration coming from that guy  I\'d be interested to utilize a small casting / pocket university like setup for teaching better coffee farming in @28.0295096,84.4467343,14676a,20y,41.63h,62.8t/data=!3m1!1e3!4m5!3m4!1s0x39953fa2e0beb76d:0xeb467b0ef0d2342b!8m2!3d28.1652914!4d84.6322156?hl=en">Hansapur, Gorkha, Nepal. Which is the village for this year\'s trial of our "direct international sales of Nepali coffee" project. Just a small project for now, with a friend from last year going there around next week and then again in February. The problem is obviously getting the coffee farming content together, in Nepali \u2026', u'entity_id': 27569, u'annotation_id': 12969, u'tag_id': 1316, u'entity_type': u'comment'}, {u'quote': u'Instead, the EDGE Academy ("pocket university") concept that @Alberto mentioned came up (it is here by the way). It\'s about providing the education that will later enable citizens in Nepal\'s countryside to solve their other issues by themselves, including with new appropriate technology like the ideas from my list. I still really want to implement the pocket university in a large scale, but have not yet found a funding partner for the project so far. So for the start, there will be just a coffee growing course in combination with a project for international direct sales for Nepali coffee. (Edgeryders LbG provided some seedfunding for that project.)', u'entity_id': 21834, u'annotation_id': 9460, u'tag_id': 1316, u'entity_type': u'comment'}, {u'quote': u'@trythis this reminds me of the concept of "pocket university" proposed by @Matthias .', u'entity_id': 26964, u'annotation_id': 9459, u'tag_id': 1316, u'entity_type': u'comment'}, {u'quote': u'Hello @evelina , welcome from me too. Spoken word for cultural integration\xa0sounds like a new approach\xa0to me, at least in continental Europe. Maybe there is soimething in English-speaking countries, where spoken word as an art form is more widespread.I recall @Alex_Levene is into poetry and spoken word, and so is @Dougald . Maybe they know?\n\nHave you tried it yet? Even on a small scale? If so, how did it go? And: was there a language barrier to negotiate?', u'entity_id': 33795, u'annotation_id': 12970, u'tag_id': 2154, u'entity_type': u'comment'}, {u'quote': u'I am also interested in open poetry, spoken word, and think most problems can be solved if good communication is possible!', u'entity_id': 33812, u'annotation_id': 9465, u'tag_id': 2154, u'entity_type': u'comment'}, {u'quote': u"Similar to @Alberto, \xa0I'm curious your experience\xa0with this so far. Spoken-word is a passion for me and I've definitely seen the power it has to give an outlet for\xa0people's voices.\xa0\n\nI also wonder if you have looked into any other creative mediums for creating common ground? One thing I am looking into in this realm is Theater of The Oppressed. Maybe this upcoming webinar would be of interest to you?", u'entity_id': 33802, u'annotation_id': 9464, u'tag_id': 2154, u'entity_type': u'comment'}, {u'quote': u'I live in Amsterdam and I work a lot here with spoken word poetry and inclusion and self development. I am happy to share if you like!', u'entity_id': 33781, u'annotation_id': 9463, u'tag_id': 2154, u'entity_type': u'comment'}, {u'quote': u"As today we record as a great success the fact that growing multiculturalism, migration and movement of people with varied and different cultural backgrounds are considered usual and an ever growing phenomenon. A lot has been done in the field until now however, still a lot to do in the field. It is important to notice that there is still great animosity within local communities as well as a lot of prejudices. A lot of issues also arise as people of local communities do not acknowledge the issues at hand which creates more and more divide which is not being addressed. Those stereotypical thoughts are mainly generated as a result of the absence of adequate communication, education and the influence of the society through all types of mediums.\nWhithin those toughts and seeing what is happening even amongs my friends, I got an idea to approach cultural identity questions, self and other's perception through a different lens as well as to raise awareness about cultural integration, positivity and motivation to create positive patterns and a sense of belonging. As the name is suggesting, it's about speaking and creating save space for that using spoken word poetry, creating space to improvise as well as to bring experience into already existent scene.", u'entity_id': 33752, u'annotation_id': 9462, u'tag_id': 2154, u'entity_type': u'post'}, {u'quote': u'I was the facilitator of my weekly GROW group for over two years and we hold Hope for each other. Last year I took up the opportunity of attending a creative writing class freely given by Galway writer Rita Ann Higgins primarily for GROW members. Our members got the chance to have their poems and short stories published in a booklet and I enjoyed reciting two of my poems at the GROW National Conference in Galway. During the past few years I have also been involved with Advancing Recovery in Ireland (ARI). Service users like myself have been working with HSE staff, and we have been planning the introduction of Recovery Colleges, Peer Support worker positions and Consumer Panels.', u'entity_id': 562, u'annotation_id': 9461, u'tag_id': 2154, u'entity_type': u'post'}, {u'quote': u'Sharing this:the ibreastexam, low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.\xa0\nThis is the full article:\xa0\nUE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.', u'entity_id': 803, u'annotation_id': 9466, u'tag_id': 1318, u'entity_type': u'post'}, {u'quote': u'@Gehan, just a thought.. Meditation in policing? Success of Vipassana in prisons in India vs Vipasana used as punishment for prostesting teachers - this happened on the course I done after the death of Mr Goenka, bad vibe. Meditaion used as replacement for detention for kids.', u'entity_id': 25464, u'annotation_id': 9468, u'tag_id': 1319, u'entity_type': u'comment'}, {u'quote': u'6:03\n\n\n because when the Ugandan police force\n\n\n\n\n 6:06\n\n\n was rebranded as the Ugandan National\n\n\n\n\n 6:09\n\n\n Police a lot of people said to the\n\n\n\n\n 6:12\n\n\n inspector general who is basically the\n\n\n\n\n 6:13\n\n\n chief officer why not the Ugandan police\n\n\n\n\n 6:16\n\n\n service and his reply was cross and i\n\n\n\n\n 6:20\n\n\n quote cops are not waitresses', u'entity_id': 29959, u'annotation_id': 9467, u'tag_id': 1319, u'entity_type': u'comment'}, {u'quote': u'Summer 2015. It was nearly the end of August when Kos Island turned into a battlefield during a registration procedure. Hundreds of protesting migrants demanding quick registration began blocking the main coastal road. The local police attempted to break up the crowd with batons and by spraying foam with fire extinguishers. An officer was being filmed slapping and shoving migrants queueing outside the local police station.', u'entity_id': 550, u'annotation_id': 9471, u'tag_id': 1320, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 17588, u'annotation_id': 9470, u'tag_id': 1320, u'entity_type': u'comment'}, {u'quote': u"Sometimes the pressure comes from the armed police that surround the camp. At every entrance a bus full of armed police waits. They stop all vehicles going on to the camp. Sometimes they're friendly, sometimes officious, always confrontational. When there are problems on the camp or the nearby Motorway they respond with CS gas canisters. They fire them at will over the whole camp. Dispersing refugees into shelters. The canisters overheat when they let the gas out, this causes fires in the camp. Often the police target refugee communal areas like restaurants and shops. They try to use the gas to burn them down. I will never forget walking through the camp, under a thick fog of CS gas, my throat raw, shielding my watering eyes from the gas with a scarf.", u'entity_id': 536, u'annotation_id': 9469, u'tag_id': 1320, u'entity_type': u'post'}, {u'quote': u"Early considerations on role of policy\n\nWhere policy sits in relation to this also came up in conversation. Simon commented that \u201cmisguided policy can be worse than no policy\u201d\xa0and we agreed that this wasn\u2019t to dismiss the efforts of policymakers altogether. Policy is by its nature \u2018top-down\u2019 and in conversation with @Luke_Devlin we couldn\u2019t not notice the etymological connection between the words Policy/Police/Politic - polites is citizen, polis is city or state (as well as Glasweigan for police!). But the word policy itself means \u201cway of management\u201d and the discussion is perhaps - what ways of managing the health and social care of citizens are most appropriate given what we now know about how the world works has shifted considerably since the times of ancient Greece or 14th C France. The current mechanics of government need reform if they are to cope with the scale and complexity of current challenges.\n\nOver the coming months and through the Open Village program, more of these conversations and questions will refine an understanding of the enabling factors for OpenCare - drawing largely on the multitude of posts by the Edgeryders community that detail\xa0real life experience and precious lessons learned about what works and what doesn't work.\xa0In the process clues will be gathered that start to\xa0deconstruct policy and re-imagine new tools that are more generative in relation to the health and wellbeing of citizens. And beyond this perhaps how we reconfigure the role of the State to re-calibrate responsibility and the role of citizens in ways that create greater agency as a foundation to health.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentpolicy\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 6462, u'annotation_id': 12972, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u"Where policy sits in relation to this also came up in conversation. Simon commented that \u201cmisguided policy can be worse than no policy\u201d\xa0and we agreed that this wasn\u2019t to dismiss the efforts of policymakers altogether. Policy is by its nature \u2018top-down\u2019 and in conversation with @Luke_Devlin we couldn\u2019t not notice the etymological connection between the words Policy/Police/Politic - polites is citizen, polis is city or state (as well as Glasweigan for police!). But the word policy itself means \u201cway of management\u201d and the discussion is perhaps - what ways of managing the health and social care of citizens are most appropriate given what we now know about how the world works has shifted considerably since the times of ancient Greece or 14th C France. The current mechanics of government need reform if they are to cope with the scale and complexity of current challenges.\n\nOver the coming months and through the Open Village program, more of these conversations and questions will refine an understanding of the enabling factors for OpenCare - drawing largely on the multitude of posts by the Edgeryders community that detail\xa0real life experience and precious lessons learned about what works and what doesn't work.\xa0In the process clues will be gathered that start to\xa0deconstruct policy and re-imagine new tools that are more generative in relation to the health and wellbeing of citizens. And beyond this perhaps how we reconfigure the role of the State to re-calibrate responsibility and the role of citizens in ways that create greater agency as a foundation to health.", u'entity_id': 6462, u'annotation_id': 12971, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u'However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO\u2019s are \u2018good\u2019, while they don\u2019t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.', u'entity_id': 37182, u'annotation_id': 11796, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u'This panel can be so exciting to inspire the design of an african policy inclusive and sensitive to the needs of people with mobility limitations. I guess, in the African context particularly, the first thing to do is to advocate about the necessity of this policy and engage people with mobility limitations in the de shaping of the policy.', u'entity_id': 37262, u'annotation_id': 11798, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u'For policy inspiration, you may want to check out the Policy Redesigned - collaboratively rewiring inclusivity in to policy session at the festival. Do you think the approach would be applicable to your context?\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentmakers\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 37230, u'annotation_id': 11795, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u'There is however another issue that many of us don\u2019t think of immediately. It takes a more long term perspective: funding policy. The DIY Science Network seeks to address this, as separate projects most often don\u2019t have the time, network or expertise to invest. Through conversations with Lucy Patterson, two questions emerged:', u'entity_id': 6459, u'annotation_id': 9486, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u'hat\'s it - "identify microclimates\xa0and bottom up organising at the same as distilling policy implications". That is the direction I hope the theme will take us in!\nBigger arenas is another interesting dimension and I\'d hope that by identifying the enabling factors this will be like knowing what\xa0ingredients are needed no matter the size of the pot! Healthy growth for wider impact would be a goal.\nLooking forward to more shared insights on these topics!', u'entity_id': 21670, u'annotation_id': 9485, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u'Thanks @Gehan for a great synthesis - I understand better where the policy perspective comes into your thinking and the theme overall. I think it was me who skewed it at some point because I thought that we can begin to identify\xa0"microclimates" and bottom up organising\xa0at the same as distilling policy implications. I realise now there is a much slower process of inquiry which can allow us more discrete and meaningful observations. Let me know if i\'m wrong..', u'entity_id': 19609, u'annotation_id': 9484, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u"Coming across @Alex_Levene's\xa0immense proposal Helping Refugees - the first category connects to one of the discussion points he outlines \u201cPractices for developing cohesion and integration.\u201d It strikes me that the notion of practices seems more useful than\xa0\u2018good practice\u2019, which appears\xa0prescriptive by comparison. Perhaps the idea that practices\xa0create the conditions for collective action, while good practice is an instrument of policy would be worth further discussion.", u'entity_id': 6462, u'annotation_id': 9483, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u"Under the Architectures theme it would be useful to explore - personal resilience, effective\xa0ways to pass on skills (this is also something other theme conversations have picked up on - see here). Logistics/coordination may come in to the considerations about the role of citizen compared to role of the state and appropriate instruments such as policy. I'm not yet clear on this. Perhaps others have some useful perspectives?\xa0Your questions would also bring in the dimension of emergency -\xa0what does urgency bring\xa0to the lines of enquiry the Architectures theme have considered so far?", u'entity_id': 14386, u'annotation_id': 9482, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u'working with at talking to poeple about barriers. not being able to get the time off of work. not being allowed to take 4 weeks at once is very common. Even when they would be developing useful transferable skills.\nchronic embitterment within organisations that seem incohernent.\nthis has been a big issue in the NHS. there is a large intrest in opencare from medical professionals. addressing its internal issues or just giving greater flexibility to the staff would give staff the head space for other projects of intrest.', u'entity_id': 6685, u'annotation_id': 9481, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 9480, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u"How do we encourage change at policy level?\nWe have learned more about how much we don't know about the complex geopolitics and economics around insulin than about how to directly address the policy dimensions of access to insulin and access to medicine in general. But the fact remains that our fundamental rationale for our work is economical, and has to do with the impact that decentralized production could have immediately and how it could change the landscape of incentives in the longer term to favor better policies.\xa0\nWe hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face\xa0criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the\xa0highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.\nThen, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.", u'entity_id': 859, u'annotation_id': 9479, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u"Hello all,\nI propose we work towards\xa0a session to make the most out of experiences in creating conditions and infrastructure for open care: open and collaborative policy making being one aspect of it, and I'm sure there's more. Hopefully we have the journey of Milano to start with, but\xa0I can see it playing out as a live debate with other progressive civil servants\xa0and community members whom\xa0we could invite based on a preliminary outline.\xa0\nI invited Lucia Scopelliti and Gehan for a first stab at the concept, but I could use some input from @Alberto and @Tino_Sanandaji too. - does anyone come to mind that we could invite who understands policy and political opportunities and constraints from city side or community side?", u'entity_id': 7471, u'annotation_id': 9478, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u'Co-Living:\xa0"Collective policing and policy-ing"?\nSimon from England - be useful to try to get his engagement. Lancaster co-housing. Not working. But builds in lots of protection for you. Sliding scale - when you live with people, how much are you keeping for yourself. It really comes into play when you have kids. That\u2019s when it gets interesting. The parenting dynamic can become tense. It\u2019s always a conversation between the individual and the collective. It might be interesting to hear more about how they\u2019ve doing.\nCommunity in Milano - Bovisa Co-housing. Post on Edgeryders. Premise when we got there was not as anticipated. Lack of understanding at the beginning that this was a communal project. Spectrum between family and \u2018sociality\u2019. Moved over time to sociality but not deliberately. Self-selection. Very organic.\nConnected to sharing everything - vs - sharing common values. Design, expectation, governance.\nWHAT WOULD BE AN ASPECT OF COMMUNITY SPACES LIVING/WORKING/LEARNING THAT YOU WANT TO LEARN AT OPENVILLAGE?\nBernard: Water supply - testing water. Trying to live with off grid. Reed beds. There are people working on this that we can network with. Several proposals have touched on the importance of water, there is energy to work with. or is it also more practical - like plumbing - that you\'re after? Winnie:\xa0some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point\nNoemi: How people learn to live together while also making a contribution in the world. Lifestyle - impact relationship.\nGehan: In GalGael: we don\u2019t live together but we work together. Drug & alcohol policy but this doesn\u2019t keep people safe. Collective policing versus authoritarian policing - still limited; how to go beyond the reach of policy - perhaps by creating working principles that guide day to day interactions and relations?\nJohn: underlying theme would be just asking them what are ways to form alliances without a pre-defined outcome. What is the commitment when people do decide to come/live together? \xa0\xa0\nWhat about you? What would you like to learn about?', u'entity_id': 6415, u'annotation_id': 9477, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u'Are we over-investing in one way of producing change? That being through policy.', u'entity_id': 6415, u'annotation_id': 9476, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u'THE PROBLEM\nFrom talking to friends in the wider network of DIY and community-based science projects (many related to issues of care) it seems this is a very common problem. From diybio community labs and bioart collectives, to civic environmental monitoring projects, to patient activism groups, to interdisciplinary science hacking communities\u200a\u2014\u200awe all face similar challenges in growing and maintaining ourselves as sustainable civil society initiatives. \nFinding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to \u2018citizen science\u2019 at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.', u'entity_id': 6427, u'annotation_id': 9475, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u"I was having another chat with a friend and colleague who is heavily involved in attempts to influence drug policy... in relation to the AOL theme, this is a case in point - as you may know - globally drug policy is dominated by a harm reduction approach that is founded on 2-3 experiments that drew conclusions about the addictive nature of heroin based on rats in cages - Bruce Alexander's work talks about a different approach - the globalisation of addiction based on a counter experiment nicknamed 'Rat Park' & there's a great graphic novel report of this - perhaps graphic novel format might be an alternative way to gather and diseminate insights?\nAnyway I was reminded of the Museum of the Future that another connection who's expertise lies in scenario planning around the future of health...\xa0\xa0he's\xa0used MoF\xa0in helping people to imagine the future - I think he did this with young people for a project we were involved in a few years ago. I wondered whether that might make for an interesting session that gets away from simple 'downloading' good info and purely presentation based formats? I'm due to meet up with him soon - I'll ask him what would be involved...", u'entity_id': 23963, u'annotation_id': 9474, u'tag_id': 1321, u'entity_type': u'comment'}, {u'quote': u'Gehan: still thinking deeply about the theme\n\nPolicies are not bad in and of themselves, but they are flawed can be improved.\nExamples of policies that enable / disrupt citizen responses care work\nDrawing on systems theory\nHumanity has a lot of genuine impulses around care, and policies can disrupt that.\nCheck http://procomuns.net/en/program/ in relation to open care\n\n Thought this session looked relevant -\xa0City Challenges: Economics of care. "To what extent do digital platforms and collaborative methodologies cover the field of care, or can they be applied and respond to the needs that exist in the field of the care economy?"\n Technology infrastructure and blockchain for a common collaborative economy.\xa0"We will introduce new technological tools within our reach and discuss technological strategies to then dynamically debate (with \u201cballs\u201d) about the potential (or not) of blockchain to promote the procommon collaborative economy."', u'entity_id': 6435, u'annotation_id': 9473, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u'What is a good way to influence policy?', u'entity_id': 6439, u'annotation_id': 9472, u'tag_id': 1321, u'entity_type': u'post'}, {u'quote': u"DIY Science Network want\xa0to participate in the panel to present the perspective of bottom-up research initiatives. They're exploring both the", u'entity_id': 6671, u'annotation_id': 9490, u'tag_id': 1322, u'entity_type': u'comment'}, {u'quote': u"How do we encourage change at policy level?\nWe have learned more about how much we don't know about the complex geopolitics and economics around insulin than about how to directly address the policy dimensions of access to insulin and access to medicine in general. But the fact remains that our fundamental rationale for our work is economical, and has to do with the impact that decentralized production could have immediately and how it could change the landscape of incentives in the longer term to favor better policies.\xa0\nWe hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face\xa0criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the\xa0highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.\nThen, with these realigned economic incentives around insulin and a cure for diabetes, we can revisit policy questions from a more favorable position, advocating for policies that favor innovation from small-scale groups and revoke the legal privileges large manufacturers have won to protect their oligopolies.", u'entity_id': 859, u'annotation_id': 9489, u'tag_id': 1322, u'entity_type': u'post'}, {u'quote': u'1) The arena had the vision\n2)\xa0They determined some critical hard choices, policy making decisions\n3)\xa0At that point the arena had developed about 10 ideas for how this can be put in practice. Living Streets was one of these ideas.', u'entity_id': 33746, u'annotation_id': 9488, u'tag_id': 1322, u'entity_type': u'post'}, {u'quote': u"Food Sovereignty and Agroecology are political matters at heart -hence the (obvious) connection with governments and policy makers -as you correctly pointed out. What \u2018we the people\u2019 fail to recognize is that \u2018that\u2019 (governors and policy-makers) should be us! We need to play a more active role where our livelihoods and our present and future are concerned! So we need to find ways (and where there isn\u2019t one, create it) to push for changes in policy, in the way our affairs are run (and whom by). This is why pushing for the creation of Food Policy Councils is an idea I stand by, and this is why one of the main pillars of the FoodSov movement is related to this specific sector -ie political lobbying and advocacy. After all, the word 'eco' in greek means house, the place where one lives, and we can't be proper (agro)ecologists without giving enough attention into how this house is run!", u'entity_id': 11122, u'annotation_id': 9487, u'tag_id': 1322, u'entity_type': u'comment'}, {u'quote': u'However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO\u2019s are \u2018good\u2019, while they don\u2019t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.', u'entity_id': 37182, u'annotation_id': 11797, u'tag_id': 1323, u'entity_type': u'post'}, {u'quote': u"Thanks for your insight and your positive comments.\xa0\nYes, I agree that it's best to run the BID projects with the BID task force community rather than soley relying on the politicians to lead. Although, at the moment it's still quite challenging for politicians here in Belgium to change the cultural mindset of opening up to public/private/citizen partnerships. Hence why some initiatives have been at grass roots level with the community itself. I sincerely hope this will change over time.", u'entity_id': 11534, u'annotation_id': 9492, u'tag_id': 1323, u'entity_type': u'comment'}, {u'quote': u'It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.', u'entity_id': 716, u'annotation_id': 9491, u'tag_id': 1323, u'entity_type': u'post'}, {u'quote': u"'d like to propose\xa0a theme that I've been curious about for some time. How do we create the conditions for\xa0#opencare in our organisations and our communities? How do we design communities and organisations that are care-full, and promote health and flourishing? I'm curious about the interplay between policy and culture (as in ways of doing things rather than music and art). Are policies simply\xa0agreements about what we think works and what is right at any given time? Moreover how are they implemented at government or\xa0regional levels and in organisations, if they are to be more than good intentions? Do they end up needing enforced or policed by someone? Are they a tool of old ways of doing things built on hierarchy and power over? What role can they play in\xa0creating the conditions for\xa0opencare or for that matter for love and acceptance and generating\xa0the sense of coherence that Antonovsky describes in salutogenesis\xa0and its approach to study what creates health and well being rather than researching dis-ease?\n\nMy work through the GalGael Trust based in the Govan area of Glasgow has offered some hints that actively generating\xa0a healthy\xa0culture is perhaps more effective in achieving in an anchored way the 'good intentions' of policy. Strong values guide actions, decisions and\xa0behaviour, influence language and how we treat one another. Our workshop sees people working, for the most, part side by side. We\u2019ve had people with violent histories, people who suffer agoraphobia, depression and addiction. Yet something about the space we\u2019ve created has meant that people largely get on, there\u2019ve been no violent incidents in our 20 year history and people describe their doctor taking them off medication, sometimes for the first time in many\xa0years.\xa0\n\nIt\u2019s not a silver bullet. People lapse. They fall back in to the darkness at times. But there is something undeniable about the environment we\u2019ve created and actively generate that has a therapeutic affect. While some of our participants and volunteers have said \u2018the work is the therapy\u2019 - this refers to the hands on purpose they find in their labours not the work we do with them. So is this as a result of policy or culture? What is it that creates the conditions for an environment of open care? How do we understand the architectures of love that are called for to create a more care-full society?\n\nWe\u2019ve recently spent a year curating a collaborative process to explore what it means to \u2018be GalGael\u2019. It saw us going back to our beginnings and drawing on the learning from our days as an anti-motorway protest camp. We wrestled with our assumptions - which were shared and which were disputed?\xa0We explored whether our purpose was actually underneath it all - to bring about greater love. This contributes to our being in a good place to\xa0explore this theme more widely in our own organisation\xa0and its practical application in more depth.\n\nThrough the process we would like to connect and learn from other organisations exploring this theme.\xa0\n\nWhat kind of structures and processes are essential building blocks or make up the \u2019hardware\u2019?\n\nWhat kind internal capacities and approaches make up the \u2018software\u2019 that keep a healthy organisation, healthy community or healthy societies humming with human flourishing?\n\nThe theme could also link to other themes that explore how we create the conditions such as:\n\n\ncitizens income and the politics of time;\nnature of collaboration and how we exercise our freedoms and capacities;\nthe nature of work in care-full societies;\nforms of leadership and personal capacity called for.\xa0\n\n\nI\u2019m very new to Edgeryders and I\u2019ve not had much time to develop this so would appreciate feedback and thoughts as to whether this might be a theme of interest to others.", u'entity_id': 6304, u'annotation_id': 12973, u'tag_id': 1325, u'entity_type': u'post'}, {u'quote': u"Theme: better understanding policy in context of a top-down system. Even good policies may be limited in their effectiveness - that is by the time they cascade down to the level of effect/impact they are often either diluted or do not produce the effects desired by the original intentions of the policy no matter how well meaning these might be.\xa0Another way to look at it would be this: living systems theory has turned on its head the Victorian world-view that imagined that unless mankind were imposing order from top down then chaos would ensue. The new sciences - nano biology, quantum theory - have revealed the extent to which order is a natural impulse (fractals\xa0being a beautify example) and that many of mankind\u2019s efforts to date have disrupted this impulse.\nSo what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?\xa0\nFrom this understanding - how do we understand the instruments and tools of the collective, of citizens - what do they look like in relation to health and social care? Equally, how do we understand the instruments and tools of the state (such as policy) - how can these be designed to enable the collective response that is the basis of welfare in traditional societies?\nThe next question would then be how this might inform the nature of the session you\u2019d offer. It seems there's so much you could contribute for joint exploration.\xa0\nThere seems to me to be a common thread in what I\u2019ve encountered of what you\u2019ve sent through. Its something about the format of the various happenings. e.g. Monastery, Galway Soup - that genuinely reflect values of welcome, bringing people in, shifting power, playing with stereotypical roles to create new experiences that have greater meaning - that get under the superficial. Does that make sense? And something about new recipes - the way you put together interesting elements to create new experiences/outcomes. Perhaps you\u2019d want to focus on one of the three thematics? Sharing what\u2019s really worked and using peer review (I\u2019m gathering that this is something ER are particularly keen on) to solve some things that aren\u2019t yet clear/sorted? Which of the three thematics connects most strongly to the health and social care? There\u2019s also the tiny houses & homeless folks work you mentioned. Might this also be a possible session?\xa0\nYou\u2019ve so much good work to choose from - would a way forward be for you to suggest 2-4 possible sessions and we work up the one that has the best connection to the theme?", u'entity_id': 23982, u'annotation_id': 9504, u'tag_id': 1325, u'entity_type': u'comment'}, {u'quote': u"I'm curious what is an actionable proposal from the group and how it is being received..?\xa0Going straight into policy making seems like a titanic work, i'd be interested in how food waste is being approached at the policy level, if at all?\xa0This seems like a topic many people care about and which is already seeing promising small scale solutions, particularly in Germany.. with Foodsharing.de, Yunity, community gardens, pop up\xa0fridges and many others.", u'entity_id': 9353, u'annotation_id': 9503, u'tag_id': 1325, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 775, u'annotation_id': 9502, u'tag_id': 1325, u'entity_type': u'post'}, {u'quote': u'Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable.\nThe story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017.\n\nIn November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject.\nLisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies.\nIt was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders.\nCristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity.\nThis is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight.\nListening\xa0it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors. \xa0\xa0\nIncluding as the collaboration with the trade association got closed we\u2019ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers.\nGoing where innovation beats\xa0we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into\xa0co-design sessions pivoting around their necessities may generate unexpected outcomes.\nDealing with collective intelligence\xa0is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it.\nThis is where we stand now and the next steps are:\nCo-designing / mobilizing resources\xa0of course we will not predefine outputs, but rather keep the sessions open to any outcomes.\nPrototyping policies\xa0by monitoring and evaluating this experimentation.\nWe are aware that talking about \u201cenforcing\u201d a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process.\xa0Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions.\nIt would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.', u'entity_id': 819, u'annotation_id': 9501, u'tag_id': 1325, u'entity_type': u'post'}, {u'quote': u"I think perhaps there are other people more qualified by me to answer this: those involved in places where they have already set up such mechanisms like the people in the city of Corke and many others outside the EU borders. But if I were to give my personal opinion, as I said in the article I believe htat every action has a political meaning -picking up my fork, paying for whatever I decide to buy is done to fill my stomach, but without realising it much it is also a highly political action. Because with every bite and every buy I choose and I shape the world I want to live in.\nThe point is that 'we the people' finally decide to take action, to become involved and to gain for the first time ever our own sovereignty -at least when it comes to what food we consume.\nNothing is set. The future is what we make it. So it is up to us 'the people' to decide whether we want to continue living a life of subordinates, never resuimng our own responsibilities (which is actually much easier as there is always someone else to blame for our problems) or to finally ascend and take (our) matters into our own hands. Food policy councils are only as good, representative and successful as the people that comprise them...", u'entity_id': 12835, u'annotation_id': 9505, u'tag_id': 1326, u'entity_type': u'comment'}, {u'quote': u"Thanks for your insight and your positive comments.\xa0\nYes, I agree that it's best to run the BID projects with the BID task force community rather than soley relying on the politicians to lead. Although, at the moment it's still quite challenging for politicians here in Belgium to change the cultural mindset of opening up to public/private/citizen partnerships. Hence why some initiatives have been at grass roots level with the community itself. I sincerely hope this will change over time.", u'entity_id': 11534, u'annotation_id': 9507, u'tag_id': 1327, u'entity_type': u'comment'}, {u'quote': u'It is much better for the BID groups to be politically autonomous and to save the time and energy of local politicians and civil servants. This way you get to use that time and energy on BID directed outcomes, rather than them spending it all in discussion and meetings. It really does help get things moving!', u'entity_id': 7852, u'annotation_id': 9506, u'tag_id': 1327, u'entity_type': u'comment'}, {u'quote': u'Zapatistas in Chiapas, the ZADs in France,', u'entity_id': 521, u'annotation_id': 9511, u'tag_id': 1329, u'entity_type': u'post'}, {u'quote': u'The least responsive network where the politicians, coming back from their annual non-active period it was difficult to activate them. Every attempt ended up in a dead end.', u'entity_id': 541, u'annotation_id': 9512, u'tag_id': 1330, u'entity_type': u'post'}, {u'quote': u'in my opinion you have touched a key point. When you work in a public administration the relation between technicians and politicians are crucial, in particular if you want to do something, if you want really realize new and innovative projects. In many situations for example the fact that a politician is engaged in a project became the only possibility to realize the projects.\n\n\xa0\n\nIn many situations I saw terrible fights \u2018politicians versus technicians\u2019, but also collaborative approach, with a sharing of knowledge, working together for the same objectives.\n\n\xa0\n\nAlso the project of @Yannick seems very interesting and I would like to know more\u2026 could you give us more details?\nAs we announced we launched a challenge. \n\xa0\nCould you read it and tell us if you think it\u2019s interesting written in this way or if you want to change something.. Every your suggestion will be precious!!!\n\n\xa0\n\nNow we are starting to disseminate the challenge among some local partners, NGOs, associations that are working with us, but also among other local italian municipalities.\n\n\xa0\n\nCould you help us to engage other political actors, as @Alberto suggested??\n\n\xa0\n\nIt could be really great and potentially of huge impact\u2026 what do you think??', u'entity_id': 29961, u'annotation_id': 9513, u'tag_id': 1331, u'entity_type': u'comment'}, {u'quote': u"That feeling of powerlessness in the face of politics is present in many people's minds, no matter where they are in the world or the\xa0regime governing them.. Unfortunately it's hard to say what needs to happen to undo that. A lot of the times it is cumulative effects, at others it is a sudden outbreak.", u'entity_id': 15843, u'annotation_id': 9523, u'tag_id': 1332, u'entity_type': u'comment'}, {u'quote': u"Maybe this is how at least a little good can come from it. Our city has an image of being progressive and there are lots of projects that prove this. In the end however, politicians mainly want to get re-elected or get a better position next term. This means they need to live up to public expectations and produce impact in the short term. The fact that people here expect politicians to be more progressive, means the politician's\xa0output will have to be\xa0more progressive in order to make a career. As a result we have a pretty awesome city.\xa0However,\xa0it's a sugary coating that\xa0hides the broken way in\xa0which we are governed.", u'entity_id': 28966, u'annotation_id': 9522, u'tag_id': 1332, u'entity_type': u'comment'}, {u'quote': u'A globe-spanning sustained effort to help community leaders, mayors, politicians and fight back against populist rhetoric and divisive narratives.', u'entity_id': 5234, u'annotation_id': 9521, u'tag_id': 1332, u'entity_type': u'post'}, {u'quote': u'Most of all people are very aware of how fragile and important peace is. The story of a popular revolution co-opted by a military regime that then did its best to murder an entire generation is still fresh in the collective memory. I am reminded of this every time I hear any talk of revolution: the move towards a western style liberal democracy is not one that Ethiopians I spoke to value highly. Rather, it is economic rights and development that seem to be at the heart of their concerns.', u'entity_id': 4134, u'annotation_id': 9520, u'tag_id': 1332, u'entity_type': u'post'}, {u'quote': u'"Chinese syndrome" of a technocratic government with a fairly poor human rights record which is, however, quite accountable and successful, and enjoys a high degree of consensus. For a Westerner, this can be unsettling!', u'entity_id': 16450, u'annotation_id': 9519, u'tag_id': 1332, u'entity_type': u'comment'}, {u'quote': u"However, it's not yet decided. The latest Greek developments and the upcoming Spanish elections make me hope that elections can indeed (at times) be the peaceful, orderly revolution that we were always taught they are meant for. And where this works out, it's just great, literally a lifesaver.", u'entity_id': 18061, u'annotation_id': 9518, u'tag_id': 1332, u'entity_type': u'comment'}, {u'quote': u"That feeling of powerlessness in the face of politics is present in many people's minds, no matter where they are in the world or the\xa0regime governing them.. Unfortunately it's hard to say what needs to happen to undo that. A lot of the times it is cumulative effects, at others it is a sudden outbreak.", u'entity_id': 15843, u'annotation_id': 9525, u'tag_id': 1333, u'entity_type': u'comment'}, {u'quote': u'A government\xa0platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.', u'entity_id': 28966, u'annotation_id': 9524, u'tag_id': 1333, u'entity_type': u'comment'}, {u'quote': u"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results:\xa0common decency is no longer enough and one has to have grit. In other words, I feel\xa0more and more that any ambitious effort to lead to\xa0greater equality, access, fairness in the world needs to become somewhat\xa0political and build consistent support behind them.", u'entity_id': 6933, u'annotation_id': 9535, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u"Thanks for the analysis Noemi. Grit is about all we've got right now! It's gotten us some results in the lab and gotten many people interested in helping out. And it has been key, in the preceding years, to founding the hacker space itself that we work out of.\xa0We've gone out on a limb and inspired some people and now we need to make the most of this interest. Influencing politics in favor of the values we're trying to serve is a side interest of most of the team and we're hoping in collaborating with Edgeryders here to be able to contribute to these broader questions even as we focus on our scientific and engineering work.", u'entity_id': 11314, u'annotation_id': 9534, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u"every one of those terms has an ideology behind it\nAbsolutely correct.\nOver the past eight years, in addtion to other duties as a manager of an organization, I administered the health care benefit for my employees. \xa0This all took place during the whole Obamacare/socialized medicine debate.\nAs you know, in politics, one gets ahead by identifying and demonising a bad guy. \xa0In that debate the bad guys were the health insurance companies. \xa0Plenty of blame to go around with that group, no question.\nBut in shopping for the best plans, I noticed something interesting. \xa0If we opted for a plan where the pharmaceudicals were all generic, the premiums for each employee was reduced by half. \xa0By half! \xa0No other cost reduction option even came remotely close to that. \xa0So,\xa0if half the expense is going to the drug companies for their proprietary drugs, then shouldnt they have figured a little more heavily in the national debate? \xa0(Actually it did with one candidate - Bernie Sanders.) \xa0\nOne would think, but in my view, that would have complicated things too much for the huge numbers of people who need everything in the public sphere dumbed down so they can grasp it. \xa0(I hate to say such things because it sounds so elitist, but after decades of involvement with the public dialogue I can't avoid that conclusion.)", u'entity_id': 30781, u'annotation_id': 9533, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u"That's an interesting point about the apoliticality of Open Care - in the party political sense, of course it should not be aligned with a particular side. But if politics just means 'how we organise things in our society', then it is very much political - and if it does bring about significant change, it's bound to be seen as such by some people.\nA current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.", u'entity_id': 30187, u'annotation_id': 9532, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u'placing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?\nAlso, Open Care is a distinctly apolitical effort, but after it gains some traction both specifically and as a meme that propagates, I see a danger in attempts at co-opting or using it by political forces wanting to channel the narrative - and the money - to a particular agenda. \xa0Of course this is from someone in the US where everything is political on some level.', u'entity_id': 29375, u'annotation_id': 9531, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u"Thanks, @Alberto, you are right, I was mostly thinking of the UK example, and the way in which healthcare at the point of delivery is seen as a neutral, technocratic institution. The recent junior doctors' strike shows the same pattern: doctors being criticised for 'politicising' healthcare, as if everything about it is not already political.\nBut I would venture [not living there, but observing from afar] that there is a similar issue in the US - people think of the status quo as 'normal' and don't see that it already has a political dimension, so attempts to disrupt the massively wasteful insurance/medical cartel [as Obamacare made some small steps to do] come up against lots of resistance even from people who might benefit from change.", u'entity_id': 28236, u'annotation_id': 9530, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u'I may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product:\xa0"Support us, and there will be\xa0more money for health care!". They can do this because\xa0everybody\xa0agrees that funding public health care is a good thing. In this sense, even though it\'s still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it\'s part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.\xa0\nWe (Italians, possibly the British too)\xa0do not think of health care as political because it\'s not divisive as a basic choice. I appreciate ours is not a sophisticated position.', u'entity_id': 27204, u'annotation_id': 9529, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u'"Obamacare" is arguably the number one political debate along with immigration and national security.\nAnother aspect is student loans. \xa0For years students have taken out loans to attend universities. \xa0For years the government set low interest rates and wasn\'t aggressive in going after delinquent accounts. \xa0That changed some years ago and those loans are now both very expensive and likely to scar your entire working life if you don\'t pay them on time. \xa0I submit that is has a chilling effect on people seeking careers in medicine and health care at the higher levels. \xa0And it is certainly a huge reason why there is such a shortage of general practitioners compared to specialists. \xa0A GP has to take many more years to pay off their student debt.\nI could go on and on. \xa0But the point is that it is impossible to separate health care from the political debate in the US, and probaly everywhere else.', u'entity_id': 26630, u'annotation_id': 9528, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u'"Healthcare is largely seen as a \'value-neutral\', apolitical issue, and it\'s so important to put it back in its political context"\nCouldn\'t agree more with you here. Certainly, given what is happen in the UK at the moment it is really important that both the wider community and the medical professionals themselves understand that they stand in a highly politicised space. I think it\'s time we stopped demanding our doctors and medical practitoners pretend they somehow exist outside of the politcal\xa0world around them', u'entity_id': 24586, u'annotation_id': 9527, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u"This really spoke to me. Healthcare is largely seen as a 'value-neutral', apolitical issue, and it's so important to put it back in its political context, and to see that our attitudes towards it are framed by the wider values of our society. It looks like Woodbine are doing some great work on this.\nAttitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'.\nI wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this?\nI should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility.\nIf you have a community library, Peter Deadman's latest might make a great addition - not only does it cover a whole range of areas [general health, pregnancy, ageing, etc] but it cites lots of western science to back up the older eastern practices.", u'entity_id': 21278, u'annotation_id': 9526, u'tag_id': 1334, u'entity_type': u'comment'}, {u'quote': u'in certain ways. \xa0Millions of not very bright people who derive their understanding of the world through a mix of TV and their own predjudices and assumptions view the healthcare status quo as being one where they have more individual choice. \xa0(Obanacare = socialism and "death panels.")\xa0Over here that is like a core religious belief, so if you can convince people they will have fewer choices then it isn\'t that hard to get them to oppose it, even though it is not in their economic interest to do so. \xa0Indeed the fact that Ronald Reagan got elected largely with the support of such people is a perennial case in point.', u'entity_id': 28630, u'annotation_id': 9537, u'tag_id': 1336, u'entity_type': u'comment'}, {u'quote': u'many (not to say most of\xa0the) players join consortia to submit proposals for EU funding, looking just for either cash, or for a way to complete "deliverables" with the minimum effort required. This attitude does not deliver actual usable results', u'entity_id': 11657, u'annotation_id': 12974, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u'Although if we can look at the intentions and why the people do the things out of the trending and them probably we find people working and developing solutions for the day by day technologies that doesn.t give such a much money right ? The point is what happen when the only thing that is important is to save lifes, save the planet, if we together believe that things can change doesn.t matter the money around ... you do the things from the needed, and this is what is the important and what I consider a successful project here, in Africa, in Spain or In Antartida. Doing the things in this way is never payed with money you are been payed with looking at the impact having better conditions and new lines to explore. Of course is not a easy way, because people needs money to survive. We can talk for hours at this level but If I get a bit of distance and I look from the ecofeminisme perspective It will be easy to think on that:', u'entity_id': 38478, u'annotation_id': 11834, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u'Example: look at Academia as a space for sharing expertise and see whether it is going in the right direction paywalling everything and being very slow to reform in terms of open access policies. What you have is a set of no-way-out reactions,\xa0people like A. Swartz or this lady in Kazakhstan\xa0taking action in their own hands. I would not favor those of course, but middle ways are long term battles with a lot of coordination across the net. Repeat, repeat, repeat..', u'entity_id': 6933, u'annotation_id': 9544, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u"I suspect some in\xa0Government aren't in a position or of a mind to focus on the service users at the moment, but rather see some dubious measures\xa0as essential cost-cutting / profit maximisation on the part of the corporate body. Another point to bear in mind is the connections between certain politicians, financiers, and industry - as with many sectors!)", u'entity_id': 27817, u'annotation_id': 9543, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u'Plain communities are highly interested in health education and disease prevention.\xa0Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system.', u'entity_id': 713, u'annotation_id': 9542, u'tag_id': 2157, u'entity_type': u'post'}, {u'quote': u'So, the theory you mentioned and the article you recommended are new to me and I find they describe aspects of the arts-market relationship, amongst others, very accurately. Thank you for sharing this with me! Before reading these, I was thinking about how creative fields and other\xa0professions, like sports, have some similar stress sources, and this was confirmed and explained by the superstar economy theory.', u'entity_id': 32270, u'annotation_id': 9541, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u'Another key point in artists\u2019 lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.', u'entity_id': 32092, u'annotation_id': 9540, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u"Now, you\xa0really\xa0do not want to work in a labour market that makes superstars. Whoever you are, probability says that you are almost certainly a loser in the race.\xa0That's extremely stress inducing.\xa0But artists do work there. And so do others, as you point out.", u'entity_id': 32197, u'annotation_id': 9539, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u"Poland each doctor is given a number of tests he can prescribe to people: blood, sugar, more sophisticated ones. BUT, if the doesn't spend them all, he gets PAID for each test he didn't give out. Anyway, it's just one of the pathologies of the system I've discovered - as my family is full of doctors, every time I open the discussion I am more and more stunned by how badly it was designed.", u'entity_id': 13333, u'annotation_id': 9538, u'tag_id': 2157, u'entity_type': u'comment'}, {u'quote': u'5) Knock-on effects - people who come to the clinic see flyers and posters for other events while they are there. They buy a coffee in the cafe upstairs and bump into other people they know. They go into other shops seeing as they are in town already. People who had given up on the town are excited that something like this would happen there. Maybe some people even wonder whether there is something they could do to get things happening in the local area. These are effects that are common to any community venture, many of which other ERs have mentioned elsewhere. As with education, art, reskilling, etc, the fact that users of the service are making positive changes in their lives, and are already feeling the benefit of being involved, seems to snowball this effect even more strongly.', u'entity_id': 671, u'annotation_id': 9545, u'tag_id': 1338, u'entity_type': u'post'}, {u'quote': u'One of the areas that show most clearly the positive effects that community interventions can have are post-conflict efforts. In this post, I want to tell you about the powerful work of theTrust for Indigenous Culture and Health (TICAH) who developed a program with survivors of the Nyayo House Torture Centre and other centres in Kenya. In a follow up piece I will look more at digital systems with a mind to exploring how elements of ritual and and formalised events for expression and listening might be tapped into in new ways to support communities through online means.', u'entity_id': 553, u'annotation_id': 9546, u'tag_id': 1339, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 775, u'annotation_id': 9547, u'tag_id': 1340, u'entity_type': u'post'}, {u'quote': u'Laurent: 3 different projects, which have something in common, with people being excluded by the system because they are poor or sick.', u'entity_id': 541, u'annotation_id': 9551, u'tag_id': 1341, u'entity_type': u'post'}, {u'quote': u'This is good news to diabetic sufferers in Africa; it is good news to poor children and families in Africa who cannot afford quality health care. This is good news to hypertensive patients and the obese. This is good news to Africa. My dream is that this project greatly lowers mortality rate in Africa, and if we are not being too optimistic, perhaps...just perhaps, we may begin to realize stronger development.', u'entity_id': 725, u'annotation_id': 9550, u'tag_id': 1341, u'entity_type': u'post'}, {u'quote': u"Nowaday almost 8 of 10 Malagasy people are living under extreme poverty if \xa0we refer to the UN statistics. In 4 years only, \xa0a new cohort of population ( more than 24 %) was falling in extreme poverty. They search inside garbage and rubbish try to find some used bottle and stuff which still sellable. Statistically. It's about 5.6 million of people,\xa0more than the people on the capital and some suburban areas. In general, about 18 millions of Malagasy have to get 4 000 Ar per day less than ~ 1, 25 $ /1\u20ac according to the International Pauverty Line.", u'entity_id': 20018, u'annotation_id': 9549, u'tag_id': 1341, u'entity_type': u'comment'}, {u'quote': u'This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.', u'entity_id': 671, u'annotation_id': 9548, u'tag_id': 1341, u'entity_type': u'post'}, {u'quote': u'What is needed, on a personal level, for collective intelligence to work? How can we deal with immanent power structures? In my opinion the goal is not to take them away.\n\n\n\nChris:', u'entity_id': 38811, u'annotation_id': 11751, u'tag_id': 1342, u'entity_type': u'post'}, {u'quote': u'A participant even talked about how power be embedded in institutions when it comes to filling forms to satisfy some requirements and how institutions make things difficult.', u'entity_id': 850, u'annotation_id': 9556, u'tag_id': 1342, u'entity_type': u'post'}, {u'quote': u'That led me to feel that there is no future in publicly-funded programmes, particularly when they involve asymmetric power relationships - a local authority, for example, can simply dictate to minor partners how a budget will be deployed. This is partnership in name only,\nSo, I and my wife Lisa started "Makers" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that\'s completely self-sustaining', u'entity_id': 14151, u'annotation_id': 9555, u'tag_id': 1342, u'entity_type': u'comment'}, {u'quote': u'Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being. \xa0PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support.\nThis accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a\xa0triage system that helps participants understand the complete picture of a person\u2019s health first through a longform interview, followed by periodic \u2018check-ins\u2019 or urgent calls with the committed group. \xa0case \u2018health practitioners\u2019 are understood as those who share the responsibility of one another\u2019s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a \u2018health card\u2019 is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation,\xa0and solidarity.', u'entity_id': 826, u'annotation_id': 9554, u'tag_id': 1342, u'entity_type': u'post'}, {u'quote': u"That feeling of powerlessness in the face of politics is present in many people's minds, no matter where they are in the world or the\xa0regime governing them.. Unfortunately it's hard to say what needs to happen to undo that. A lot of the times it is cumulative effects, at others it is a sudden outbreak.", u'entity_id': 15843, u'annotation_id': 9557, u'tag_id': 1343, u'entity_type': u'comment'}, {u'quote': u'What is needed, on a personal level, for collective intelligence to work? How can we deal with immanent power structures? In my opinion the goal is not to take them away.\n\n\n\nChris:', u'entity_id': 38811, u'annotation_id': 11750, u'tag_id': 1915, u'entity_type': u'post'}, {u'quote': u"Great summary @Gehan of the work so far in all its human complexity: I'm often reminded of the phrase of encouragement used in 12-step addiction fellowships: 'progress, not perfection'.", u'entity_id': 16896, u'annotation_id': 9559, u'tag_id': 1344, u'entity_type': u'comment'}, {u'quote': u"Coming across @Alex_Levene's\xa0immense proposal Helping Refugees - the first category connects to one of the discussion points he outlines \u201cPractices for developing cohesion and integration.\u201d It strikes me that the notion of practices seems more useful than\xa0\u2018good practice\u2019, which appears\xa0prescriptive by comparison. Perhaps the idea that practices\xa0create the conditions for collective action, while good practice is an instrument of policy would be worth further discussio", u'entity_id': 6462, u'annotation_id': 9558, u'tag_id': 1344, u'entity_type': u'post'}, {u'quote': u'It only treats patients who do not have access to the national health service . One exception: low-income families, who live with 450 euros a month and simply do not have the money for medicines. (Maria: "Happens.")', u'entity_id': 4913, u'annotation_id': 12975, u'tag_id': 1345, u'entity_type': u'post'}, {u'quote': u'There is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.', u'entity_id': 507, u'annotation_id': 9570, u'tag_id': 1345, u'entity_type': u'post'}, {u'quote': u'Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for\xa0people working together and sharing space, especially if they are "living on the edge". Change is difficult and every group\xa0liable to conflict. E.C. Whitmont writes in The Symbolic Quest that \u201cThe seeming inevitability of conflict among the archetypal "powers" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.\u201d There\'s a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.', u'entity_id': 553, u'annotation_id': 9569, u'tag_id': 1345, u'entity_type': u'post'}, {u'quote': u"I realise it's a lot to expect though, I imagine\xa0coping\xa0with an unpredictable\xa0situation already takes a lot of effort.", u'entity_id': 14969, u'annotation_id': 9568, u'tag_id': 1345, u'entity_type': u'comment'}, {u'quote': u"I'd like to explicitly, out loud,\xa0acknowledge the super ideas and contributions people have been bringing to this conversation. What months ago started as a shy question by Pauline about the relationship between creativity and mental illness became slowly a rich\xa0discussion on artistic education, creative angst and vulnerability in various professions and particularly\xa0how personal attributes like introvertedness, autism, ambition, self-deceit, psychological resourcefullness at large\xa0influence the\xa0wellbeing of our professional self. What depth!", u'entity_id': 32290, u'annotation_id': 9567, u'tag_id': 1345, u'entity_type': u'comment'}, {u'quote': u"Now, you\xa0really\xa0do not want to work in a labour market that makes superstars. Whoever you are, probability says that you are almost certainly a loser in the race.\xa0That's extremely stress inducing.\xa0But artists do work there. And so do others, as you point out.", u'entity_id': 32197, u'annotation_id': 9566, u'tag_id': 1345, u'entity_type': u'comment'}, {u'quote': u"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It\u2019s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit", u'entity_id': 32270, u'annotation_id': 9565, u'tag_id': 1345, u'entity_type': u'comment'}, {u'quote': u'Then, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I\u2019m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist\u2019s own\xa0sense of identity as an artist), market/ commercialization contamination and so on.', u'entity_id': 32092, u'annotation_id': 9564, u'tag_id': 1345, u'entity_type': u'comment'}, {u'quote': u'Do you think this setup can work if not all of you were middle class (as precarious or as unstable as middle class can be)?\xa0If someone joins but they soon fall off because of too low\xa0earnings, will the rest be able to catch them?', u'entity_id': 8933, u'annotation_id': 9563, u'tag_id': 1345, u'entity_type': u'comment'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 9571, u'tag_id': 1346, u'entity_type': u'post'}, {u'quote': u'attempting to revive the dying crafts of Florence and discover the history of our district, with all its tremendous historical implications;', u'entity_id': 21382, u'annotation_id': 12976, u'tag_id': 2159, u'entity_type': u'comment'}, {u'quote': u'I\u2019m also Resilience Coordinator with An \xc1it Eile (The Other Place), a cultural organisation in Galway, with an amazing network of collaborators. In 2015 I was invited to open meetings by An \xc1it Eile (A\xc1E), mapping potential groups who could potentially fill a community led cultural hub in Galway. Some of the groups I\u2019m active with matched perfectly, so they were an easy fit. I developed the idea as part of my college work, with input from A\xc1E.', u'entity_id': 812, u'annotation_id': 9572, u'tag_id': 2159, u'entity_type': u'post'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.", u'entity_id': 863, u'annotation_id': 12979, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post \u2013 seems like great work, congrats!\n\nThe idea of understanding one's\xa0own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes\xa0out), or a many-to-many interaction between users. Can user A see the diary of user B? Do\xa0they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?\xa0\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentpeer-to-peer\n  \n    \n    Edit\n    Delete\n  \nNo Commenthistamine intolerance\n  \n    \n    Edit\n    Delete\n  \nNo Commentincreasing self-knowledge\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 8578, u'annotation_id': 12977, u'tag_id': 1348, u'entity_type': u'comment'}, {u'quote': u', thanks for the comments. \xa0While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health. \xa0At this point in NYC, there is still infrastructure for primary care and physical care within institutions. \xa0In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more "primary care" functions. \xa0But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health. \xa0In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here. \xa0We are thinking of treating acute mental health episodes, but to form the foundation for "preventative" communal mental health.', u'entity_id': 26065, u'annotation_id': 9581, u'tag_id': 1348, u'entity_type': u'comment'}, {u'quote': u'Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues? Can we look at Care as something to cultivate rather than to delegate?\n\nNew health issues are increasing rapidly, due to environmental conditions and GMOs as well as for the newly acquired technical ability to test for them. For many (new) health issues there is yet little knowledge. Often the research is guided by profit-driven decisions, in the interest of big pharmaceutical corporations or exclusively within the analytic tradition.\n\nTo look at care as a life practice. We take a health issue like histamine intolerance as a concrete example for which it is clear and mandatory that food intake and lifestyle are determining the severity of the health condition. In defining \u201cCare\u201d I would like to work around the question: Is our diet and lifestyle shaped around products or can we brake out of this path and empower ourselves in designing products - an app in this case - that help us define which food and lifestyle combination is better for each unique person? Can a tool help eventually finding one\'s way to still eat or drink that food by combining it differently and so on?\n\nNeed or problem you are attempting to solve*\nHow can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it\'s a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing.\n\u200bBeneficiary, single person and/or community*\nBeneficiary will be both single persons and the community in a mutual exchange between users affected by the health condition and those who want to participate and make use of the app like doctors, researchers, practitioners and more.\n\nSolution, brief description of the project*\nA first version of the app will be essentially A GUIDED FOOD DIARY.\nObtain information and make your own list of safe foods, referring to a build-in food list of: high-histamine, anti-histamine, anti-inflammatory and cross- check it with a list of typical symptoms and reactions.\xa0The idea is to allow users to add #tag foods, behaviors, and symptoms with the intention to generate knowledge and work in the direction of creating a community and use data-analysis for a second version of the app.\xa0The food diary can help create awareness and be a systematic tool in finding out which foods provoke reactions and to which degree.\xa0It can help to expand one\'s diet, follow elimination diet systems, help re-introduce single foods, and monitor whether these provoke any reactions or not. It can help apply more logic to why certain symptoms occur and when. It can be used to help one\'s general practitioner or specialist in doing more targeted testing. It can be a great support in case of multiple intolerances as well.\n\u200bTechnologies already adopted or that you are planning to adopt*\nWe are a two-women team whit design and development skills. We will start with IOS , and consequently adapt for Android. \n\u200bWebsite (or socials)\nWe are planning a dedicated website that will follow all the steps of the project.\n\u200bLicense, that you are planning to use\nOpen-source\nCurrent status/stage of the project\n\u200b1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community.\n2) Observing the context - UI-UX and Algorithms, comparative analysis and design: by looking at existing apps, like: "Food Intolerances", "All I Can Eat", "Your food Intolerance", and other food intolerance apps, as well as other apps on different health issues, as for example, the menstrual cycle tracking app, \u201cClue\u201d.\n\n3) Sketch out of a wireframe flow for a testable minimum viable product\xa0or prototype. The wireframe will also address issues like users privacy and handling of private health information', u'entity_id': 837, u'annotation_id': 9580, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 764, u'annotation_id': 9579, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u'. The aim is to focus on reducing\xa0the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.', u'entity_id': 841, u'annotation_id': 9578, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 9577, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u'Our work is also based on prevention and the dissemination of health information. We are medical and social intermediaries between, on the one hand, persons who live in an extremely precarious situation and on the other, healthcare professionals and social workers.', u'entity_id': 767, u'annotation_id': 9576, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u'Sharing this:the ibreastexam, low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.', u'entity_id': 803, u'annotation_id': 9575, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u'Breast Cancer Recognizer\nIdea is about detecting the breast with a prototype which have a skin recognition and accelometre to map the breast. It is necessary because every women and men needs to check their breasts once a month. And the techniques of detecting the breast cancer early is so complicated. First with 2 fingers you should message your arm pit. With 3 fingers you should rub down your breast in a circle to the niple... We can optimize this with a prototype.\nWhat are the main aspects of this project?\nOur goal is to detect the cancer in early stage. Our perspective is \u201cit can happen to anyone\u201d It is an awareness and caring project. So we encourage all the people to look after theirselves with our prototype and catch the cancer before it is too late.\nHow to?\nWe should show supervisors the research and prototype of Yemen University\u2019s to think about more simple ways to make this prototype happen. Because their system is so complex and difficult to built with only Arduinos.\nhttp://www.wseas.us/e-library/conferences/2014/Lisbon/BIOENV/BIOENV-20.pdf', u'entity_id': 774, u'annotation_id': 9574, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u'I\'m Jean-Paul Dossou, from Benin in West-Africa.\xa0\nSome wise people do perceive already the unsustainability of the current health care provision organization in western developped countries, but this is the dreamed model, that developping countries are running to. Is it possible to "jump a generation" in the organization of health care provision in developping countries? This is the underlying question of the "modern" collaborative care expriences we are going to share in this post about Coeur d\'Or.\nAs a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, C\u0153ur d\u2019Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way.\nWe aim\xa0here to present briefly\xa0C\u0153ur d\u2019Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution. \xa0Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity.\nC\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.\nThe group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.\xa0 Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 \u20ac to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers.\nThe rapid development of telecommunications improves the access of a growing number of people to Internet and social media. A critical mass of the group improves its political influence and creates a web tool that can help for a viral diffusion.\nC\u0153ur d\u2019Or demonstrates the feasibility of using social media as an innovative approach for offering promotional and preventive care on health issues in sub-Saharan Africa. It opens new windows for thinking and dreaming again for an effective community participation in all its dimensions in the global south.\nThank you very much for your comments and questions.', u'entity_id': 672, u'annotation_id': 9573, u'tag_id': 1348, u'entity_type': u'post'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.", u'entity_id': 863, u'annotation_id': 12980, u'tag_id': 1349, u'entity_type': u'post'}, {u'quote': u"I hope we can 'break out' more with these ideas, especially with the next generation!  I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)!  It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentconnecting with schools\n\n  \n    \n    \n      Cancel\nSave", u'entity_id': 38981, u'annotation_id': 11736, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u'(Drives me mad that the public purse is spending billions on obesity, whilst big food corporates are profiting from cheap, sugary, snack sales...)\n\nThe preventative works with mental health and capacity too - keeping active and interacting with others helps no end.', u'entity_id': 31537, u'annotation_id': 9590, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u'Because:\n\nIt is\xa0prevention.\xa0Healthier, more connected lives make for fewer years in care homes. People who retain a degree of self-sufficiency might be able to stay at home longer is their home is social and intergenerational. Prevention has great ROI; but our health care systems spend almost all of their resources on response instead. My feeling is that, to reduce the costs of health care, you should start running and climbing clubs rather than hospital wards.', u'entity_id': 30534, u'annotation_id': 9589, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u"So what's going on with prevention of unwanted pregnancies? Public health people I have talked to tend to shrug and say it's endemic. The window of opportunity for stupid and careless behaviour\xa0is a little too wide, the drive for instant gratification over prudence is literally a biological imperative, and even the best contraceptives only have a 99.99% effectiveness. If, say, in Italy you have about 20 million couples, if 10% of them are having sex tonight and all of them use contraception, you are going to get 200 unwanted pregnancies tonight,\xa0in just one European country. Best you can do is reduce the incidence of such incidents, but no human society ever achieved zero unwanted pregnancies.", u'entity_id': 24734, u'annotation_id': 9588, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u'While this story documents the power of underground networks to find pragmatic solutions, I am wondering if and why "P2P care" solutions do not equally pop up to create solutions through prevention (that is, preventing the pregnancies in the first place)? It could be that P2P solutions have a problem with collective motivation here, just as governments tend to rather react that act proactively, but more severe since P2P / underground solutions are so resource constrained. If so, that could point to a major issue with all P2P solutions into care (that is, making for a nice research focus).\nI\'m pretty sure there is common ground to say prefentive solutions are preferrable (assuming that women who are undergoing abortion would have preferred not to, that is, not to have become pregnant in the first place). So, no need to refer to laws or morals. Even if the law allows it, there is still reason to prevent pregnancy.\nSo even though contraception is widely available in Europe, on a society scale there are still this many unwanted pregnancies. What I\'m wondering here is about the reasons for this, and what P2P initiatives can do and are doing here? Of course this will have to do a lot with slow-changing "fuzzy targets" like culture, taboos, sexual practices and preferences. A crazy story from Nepal about how all this impairs the use of "normal" contraceptives among the young generation is this one (Natalia found it some time last year). But in Europe \u2026? What\'s going on here?', u'entity_id': 23368, u'annotation_id': 9587, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u'Within Woodbine, the struggle for autonomy has been broken down into categories of the most urgent material necessity, meant to focus our attention on tangible goals toward building power within our community. Health autonomy is a crucial part of this. The health resource center is run by a mix of health professionals and those with informal training in various health practices. We want to re-create a sense of agency over health through a focus on the dissemination of usable, teachable skills. We are working with peers who practice herbal medicine, massage, feldenkrais, acupuncture, meditation, yoga and other forms of so called \u201calternative\u201d medicine. We are creating our own definition of wellness, one that is congruent with the realities of our time. There is also a large focus on prevention of illness, of re-fostering the idea of a healthy life, not merely the absence of disease. This is how we begin the necessary process of removing our physical and mental health from systems that would damage them further, to reclaim control over health and use it to increase our collective autonomy.', u'entity_id': 5886, u'annotation_id': 9586, u'tag_id': 1349, u'entity_type': u'post'}, {u'quote': u'prevention', u'entity_id': 29958, u'annotation_id': 9585, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u'prevention', u'entity_id': 22039, u'annotation_id': 9584, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u'preventative', u'entity_id': 521, u'annotation_id': 9583, u'tag_id': 1349, u'entity_type': u'post'}, {u'quote': u'prevention', u'entity_id': 20474, u'annotation_id': 9582, u'tag_id': 1349, u'entity_type': u'comment'}, {u'quote': u'Saturday: baby milk bottle official price\xa0= 10 pounds\nSunday: baby milk bottle not available in markets\nMonday: army goes down to the market with 30 million milk bottles, the price: 30 pounds, the media goes like: \u201cthe army saved our babies, long live the army\u201d', u'entity_id': 797, u'annotation_id': 9591, u'tag_id': 1350, u'entity_type': u'post'}, {u'quote': u'Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly.', u'entity_id': 22039, u'annotation_id': 9592, u'tag_id': 1351, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 9593, u'tag_id': 1352, u'entity_type': u'post'}, {u'quote': u'@Gehan, just a thought.. Meditation in policing? Success of Vipassana in prisons in India vs Vipasana used as punishment for prostesting teachers - this happened on the course I done after the death of Mr Goenka, bad vibe. Meditaion used as replacement for detention for kids.', u'entity_id': 25464, u'annotation_id': 9596, u'tag_id': 1353, u'entity_type': u'comment'}, {u'quote': u"So your work/office\xa0space is a prison,\xa0members of your team are inmates, and it's not a one off because\xa0you are setting up a proper organisation to turn this into something sustainable,\xa0do I get it right?", u'entity_id': 9449, u'annotation_id': 9595, u'tag_id': 1353, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 9594, u'tag_id': 1353, u'entity_type': u'post'}, {u'quote': u'Another member of the community who might be interested in this is @Eireann_Leverett who does information security and has experience with tech-related privacy/security issues which is a concern. And not just for high risk users e.g. activists...\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentdata security\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 8632, u'annotation_id': 12981, u'tag_id': 2162, u'entity_type': u'comment'}, {u'quote': u"To organize webinars\xa0women can follow from home, or work,(\xa0as you know usually\xa0bullies isolated them from the world and friends) to obtain information, entrusted to others, sometimes it's a shame to talk with a close \xa0people and somewhat easier to turn to strangers...", u'entity_id': 16621, u'annotation_id': 9605, u'tag_id': 2162, u'entity_type': u'comment'}, {u'quote': u'Also, how do you maintain patient privacy while treating people on the street? Part of my work is looking at care on the move and related design solutions.', u'entity_id': 15524, u'annotation_id': 9604, u'tag_id': 2162, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 9603, u'tag_id': 2162, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 9602, u'tag_id': 2162, u'entity_type': u'post'}, {u'quote': u'(I\u2019m not mentioning how we lost our privacy and the possibility to have control over\xa0the data that we generate because it could lead us too far)', u'entity_id': 829, u'annotation_id': 9601, u'tag_id': 2162, u'entity_type': u'post'}, {u'quote': u'The program was for all students. As far as what was the \u201ccrossover\u201d there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone\u2019s inquiry. Which made the students in control of the situation.\xa0 Which is always of value.', u'entity_id': 27824, u'annotation_id': 9600, u'tag_id': 2162, u'entity_type': u'comment'}, {u'quote': u"I am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else's death\xa0feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.", u'entity_id': 8509, u'annotation_id': 9597, u'tag_id': 2162, u'entity_type': u'comment'}, {u'quote': u'When I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch "We Live in Public"? I did many years ago and it has definitely shaped how I feel about social media.', u'entity_id': 8509, u'annotation_id': 9606, u'tag_id': 1355, u'entity_type': u'comment'}, {u'quote': u'We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority.\nIn care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human "resources" and patients as "consumers" of health care services, squeezing the system to extract wealth.\nThis is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having "owners" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to "delivery of health services", which is quite a different thing.\nA useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn\'t otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure.\nTo put it another way, using financial language, owning land has a different time horizon and a different risk profile\xa0 from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That\'s the theory anyhow.', u'entity_id': 15711, u'annotation_id': 9610, u'tag_id': 1356, u'entity_type': u'comment'}, {u'quote': u'At the same, escalating asset prices are putting pressure on traditional providers, and attracting hedge funds and private equity looking for the "growth opportunities\u201d. \xa0The result is that many care home are being run as a businesses more than as a service, meaning that profit and shareholder value is prioritised over the needs and well-being of residents or staff.', u'entity_id': 758, u'annotation_id': 9609, u'tag_id': 1356, u'entity_type': u'post'}, {u'quote': u"Ce texte est une pastiche qui n'a jamais \xe9t\xe9 publi\xe9 suite au faite que le jour de publication \xe9tait le jour des attentat en France. J'ai rencontr\xe9 Yannick qui m'a propos\xe9 de partager ce texte ici, car comme d'autre id\xe9e la r\xe9appropriation de l'espace commun a comme b\xe9n\xe9fice des gens plus sain d'esprit dans la ville. Voici notre proposition:\xa0\nUne nouvelle Maison du Peuple!\nAujourd\u2019hui est un jour historique pour Bruxelles. Apr\xe8s de longs mois d\u2019incertitude, le conseil communal \xe0 enfin tranch\xe9: le Palais de la Bourse deviendra le lieu commun de tous les bruxellois. Ils ont \xe0 nouveau une Maison du Peuple!\nCe temple architectural est \xe9videmment d\u2019abord un choix symbolique. Apr\xe8s y avoir accept\xe9 la tr\xe8s controvers\xe9e exposition Behind The Numbers glorifiant le n\xe9o-liberalisme, la Ville s\u2019est rendue compte qu\u2019il fallait donner une autre destination \xe0 cet endroit que celle de pure sp\xe9culation commerciale et d'activit\xe9 touristique. En transformant une partie de la Bourse en Maison du Peuple elle redonne une place aux Bruxellois au c\u0153ur du centre historique!\nDonnez la ville aux habitants, et tout le monde s\u2019en portera mieux\nOn ne comptait plus le nombre d\u2019actions contre les plans de la Ville: plates-formes citoyennes, regroupements de commer\xe7ants, actions ludiques diverses... Qui ne se souvient du banc de 30 m d\xe9pos\xe9 au milieu de la Grand place, ou des centaines de gens pique-niquant place de la Bourse, de l'action de revendication des escaliers de la Bourse comme tribune libre d'expression politique lors du KunstenFestivaldesarts? L\u2019espace public \xe9tait devenu un haut lieu de d\xe9bat, mais paradoxalement ne recevait pas d\u2019endroit ad\xe9quat pour le mener (une Agora). La participation ne remuait que du vent, les riverains ne se sentaient pas entendus. La ville \xe9tait taill\xe9e sur mesure pour les eurocrates, les touristes Chinois, avec commerces ouverts le dimanche, tandis que le Bruxellois devait se contenter d\u2019une ville certes prestigieuse, mais sans lieu o\xf9 il fait bon vivre, une ville d'exp\xe9riences individuelles juxtapos\xe9es, atomis\xe9es, sans liens.\nLe Beer Tempel projet\xe9 dans le Palais de la Bourse aura une entr\xe9e par l\u2019arri\xe8re, et c'est tr\xe8s bien ainsi. Mais sans occuper tout l'espace, il comprendra une nouvelle Maison du Peuple, o\xf9 chacun pourrait d\xe9battre de ce qui se passe dans la ville, o\xf9 les initiatives bottom-up pourront cro\xeetre, de nouvelles id\xe9es pour une ville meilleure surgir. Il importe de faire de ce lieu symbolique qu'est la Bourse un espace de libre d\xe9bat, une Agora. Il s'agit de rendre la ville aux habitants pour que tout le monde en profite, pour que l\u2019habitant s\u2019y sente bien. Alors le touriste, le commer\xe7ant et tout les autres s'y sentiront bien aussi.\nLa Ville esp\xe8re avec cette Maison du Peuple calmer les tensions palpables par le biais d\u2019une communication plus ouverte: un endroit de rencontre et d\u2019\xe9coute sera ainsi am\xe9nag\xe9 dans le b\xe2timent. En revitalisant de cette fa\xe7on la Bourse, en lui donnant une \xe9chelle humaine, la Ville aide \xe0 fabriquer le tissu social des prochaines d\xe9cennies. Bien s\xfbr, le touriste y aura sa place, car la Maison du peuple sera ouverte a tous. Mais nous ne voulons pas que la centralit\xe9 habit\xe9e soit confisqu\xe9e par une vitrine \xe0 touristes. A la Maison du Peuple, les touristes pourraient rencontrer des Bruxellois, trouver des bons plans pour une visite de Bruxelles vue par ses habitants, trouver le plaisir culturel de ville plus qu'une consommation gr\xe9gaire.\nUtopie et R\xe9alit\xe9? \nEt maintenant vient la chute: on est encore bien loin de cette possible utopie \xe0 Bruxelles et c\u2019est bien dommage. On dirait que la peur panique du d\xe9sordre social jette la Ville dans les bras de la soci\xe9t\xe9 du spectacle, attractive aux investisseurs, par la privatisation de l\u2019espace public, le non-d\xe9bat constant avec les acteurs locaux, un trafic encore plus monstrueux, et de plus en plus de gens en d\xe9saccord avec chacun mais encore plus avec la politique bruxelloise...\nUne souffle nouveau, un bref moment d\u2019air frais pourrait nous sortir de l\xe0, donc amis Bruxellois, politiciens donnez-nous cette Maison du Peuple \xe0 la Bourse.\xa0\nSinon on la prendra!", u'entity_id': 784, u'annotation_id': 9608, u'tag_id': 1356, u'entity_type': u'post'}, {u'quote': u"A current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.", u'entity_id': 30187, u'annotation_id': 9607, u'tag_id': 1356, u'entity_type': u'comment'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11772, u'tag_id': 1922, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 9623, u'tag_id': 1363, u'entity_type': u'post'}, {u'quote': u'I wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and \xa0even spam (as I write this, someone calling themselves "Marcel Enyonam" is offering cheap loans on about ten posts).', u'entity_id': 8193, u'annotation_id': 9622, u'tag_id': 1363, u'entity_type': u'comment'}, {u'quote': u'On the matter of "the crowd": this is prevalent on so many levels. Going against this is at the core of why\xa0we do what we do in science communication and engagement. The narrative is always "the public" and "science" as seperate entities. This\xa0vocabulary already skews everything at the base. There\'s always some form of elitism, paternalism, laziness in justifying research, general lack of insight in the role of science in society and so on. Even, and most\xa0harmfully, from those that work in the exact departments dedicated to "linking\xa0science and society", often unintentionally.', u'entity_id': 27222, u'annotation_id': 9621, u'tag_id': 1363, u'entity_type': u'comment'}, {u'quote': u'After reading @WinniePoncelet \'s thoughts, @Amelia and I thought to make this post part of the ethnographic coding. The role of citizens in citizen science \xa0is super-interesting, and it is part of a larger discussion on the role of communities in care, or any activity that involves "the crowd". @markomanka wrote in the OpenCare proposal that "the crowd is often considered a rightless volunteer". In science, citizens are only supposed to provide the data, but rarely process them or interpret them. In policy, they are supposed to be stakeholders and express desired and suggest ideas, but rarely to then execute them.', u'entity_id': 26661, u'annotation_id': 9620, u'tag_id': 1363, u'entity_type': u'comment'}, {u'quote': u'use people from the camps', u'entity_id': 39334, u'annotation_id': 11666, u'tag_id': 1363, u'entity_type': u'comment'}, {u'quote': u'Are refugees themselvesd involved', u'entity_id': 39333, u'annotation_id': 11665, u'tag_id': 1363, u'entity_type': u'comment'}, {u'quote': u'The Grey group decided to take it on as a pro-bono project. We like to give back -- it\u2019s core to our company. We decided to make and distribute these units for free. We designed the first prototype in March last year and finally finalised it at the end of February this year. That\u2019s just when the weather starts getting hot in Bangladesh.', u'entity_id': 33744, u'annotation_id': 9613, u'tag_id': 1357, u'entity_type': u'post'}, {u'quote': u'@Alberto s mention slipped the radar there. Funny enough I was just procrastinating by listening to a video on procastination. I think it is long and general enough that various people could get something out of it. Just to address the "getting things done" angle.', u'entity_id': 30502, u'annotation_id': 9624, u'tag_id': 1364, u'entity_type': u'comment'}, {u'quote': u'The only way to truly build bridges between communities is to \xa0have them work together, eat together, talk and exchange knowledge about each other. (even then you\xa0might get an incredible reaction like "hey Mohamed is such a nice guy...FOR a Morrocan", so one stops regarding him as a foreigner but \xa0he stays an exception, he is UNLIKE those others\xa0:).', u'entity_id': 26012, u'annotation_id': 9626, u'tag_id': 1365, u'entity_type': u'comment'}, {u'quote': u"But there is more to co-habitation than practicality. Kasia and Pierre are lovely people: and, crucially, they are different people from Nadia and myself. We live out the city in different ways. We have different takes on almost everything, from French politics to Belgian beer. Comparing notes with them is always interesting, and I really value their insights and wisdom. Not that we spend all that much time together. I think our co-habitation unfolded in the right sequence: we started by a default attitude of rigorous mutual respect of each other's privacy and spaces. Then, over time, we grew closer, started to share the occasional meal, the occasional outing; we met each other's friends and families, lovely people to the last one. Guess what: we have built a sort of familial-like arrangement in a foreign city, among people who were originally complete strangers to one another.", u'entity_id': 648, u'annotation_id': 9625, u'tag_id': 1365, u'entity_type': u'post'}, {u'quote': u"I'd like to explicitly, out loud,\xa0acknowledge the super ideas and contributions people have been bringing to this conversation. What months ago started as a shy question by Pauline about the relationship between creativity and mental illness became slowly a rich\xa0discussion on artistic education, creative angst and vulnerability in various professions and particularly\xa0how personal attributes like introvertedness, autism, ambition, self-deceit, psychological resourcefullness at large\xa0influence the\xa0wellbeing of our professional self. What depth!", u'entity_id': 32290, u'annotation_id': 9632, u'tag_id': 1366, u'entity_type': u'comment'}, {u'quote': u'Noemi, you phrased it wonderfully talking about the pressures of "how to carry yourself in the world" as an artist. In particular, the fact that the distinction or the separation between art and life, professional and personal evaporate within the arts (from creators to art professionals) would be a generous source of tension.', u'entity_id': 32270, u'annotation_id': 9631, u'tag_id': 1366, u'entity_type': u'comment'}, {u'quote': u"Besides this intrinsic source of anxiety, which, again, I'm quite uninformed about, I see a few more layers. As you were saying, Alberto, a strong one would be the characteristics of the winner-takes-it-all labor markets, and others might hover between the two, like self-belief, identity issues etc. I imagine a tension, a dynamic.", u'entity_id': 32270, u'annotation_id': 9630, u'tag_id': 1366, u'entity_type': u'comment'}, {u'quote': u"I don't know if market skewness explains it all - it certainly makes sense. But from what people are saying here, it also has to do with professional identity and some ideas attached to it telling you what you should do as an artist or how to carry yourself in the world -which\xa0creates anxiety.", u'entity_id': 32237, u'annotation_id': 9629, u'tag_id': 1366, u'entity_type': u'comment'}, {u'quote': u'Then, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I\u2019m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist\u2019s own\xa0sense of identity as an artist), market/ commercialization contamination and so on.', u'entity_id': 32092, u'annotation_id': 9628, u'tag_id': 1366, u'entity_type': u'comment'}, {u'quote': u'Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context?', u'entity_id': 680, u'annotation_id': 9627, u'tag_id': 1366, u'entity_type': u'post'}, {u'quote': u"Here is a vid from a person from a very different milieu I think, and still there are many parallels. He's more expecting 7 shifts though:\n\n\n\nYou can just watch 7 or so minutes, but perhaps @dfko would be interested in the whole thing - I could imagine there could be some mutual benefit in that approach as well.", u'entity_id': 32273, u'annotation_id': 12982, u'tag_id': 1367, u'entity_type': u'comment'}, {u'quote': u"By way of conclusion -\xa0I'm 30 now and I've been practicing self-deceit and strategic thinking, in turns, for more than\xa05 years now. Reading your story, Alberto (thanks a lot @Noemi for the introduction, that was quite a read!), worries me\xa0that I have some time left for at least one shift", u'entity_id': 32270, u'annotation_id': 9635, u'tag_id': 1367, u'entity_type': u'comment'}, {u'quote': u"Oh, you have plenty of time. I left professional music at 34. It was a struggle to get back to being a freelance\xa0economist, but it could be done. After a few lean years, I got a breakthrough at the age of 41. When I turned 45, I took on an international job and left the country. Another two years later I co-founded Edgeryders, and this year, at 50, the transition from\xa0freelance economist to working full time for my own company seems complete. 30 years, you'll probably change your professional identity not one, but twice. In fact, Edgeryders exists in part to provide a ramp to people that want to do this stuff. I took it head on, but it does not have to be lke that. Noemi will tell you more about this if you are interested.", u'entity_id': 32271, u'annotation_id': 9634, u'tag_id': 1367, u'entity_type': u'comment'}, {u'quote': u'The thing that is pretty scary to me is this idea of arriving at an\xa0end of it, figuring out where your path is gonna take you, or worse, like\xa0this guy in the video you shared says, discovering "what you\'ve been put on earth do do". I think starting off with that mindset is freakish..', u'entity_id': 32274, u'annotation_id': 9633, u'tag_id': 1367, u'entity_type': u'comment'}, {u'quote': u"We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face\xa0criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the\xa0highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.", u'entity_id': 859, u'annotation_id': 9644, u'tag_id': 1369, u'entity_type': u'post'}, {u'quote': u'To me, the worst is when an idea is squashed because others decide to protect it for their own profit\xa0- but if it is all in the open to start, we should all benefit.', u'entity_id': 16714, u'annotation_id': 9643, u'tag_id': 1369, u'entity_type': u'comment'}, {u'quote': u'decrease the cost of many more medicines. We can only guess, but I doubt the lesson Novartis would draw is "we need to do more open research"\xa0after they pick\xa0up half-finished open knowledge and successfully turn it into a product or profit. From releasing a somewhat finished protocol into the world, they might still not take that message away, but more citizen researchers might be inclined to, and keep the effort going.\xa0It becomes an optimization problem to balance\xa0short term and long term economic benefits, taking the strategy to get there into account.', u'entity_id': 12977, u'annotation_id': 9642, u'tag_id': 1369, u'entity_type': u'comment'}, {u'quote': u'Often the research is guided by profit-driven decisions, in the interest of big pharmaceutical corporations or exclusively within the analytic tradition.', u'entity_id': 837, u'annotation_id': 9640, u'tag_id': 1369, u'entity_type': u'post'}, {u'quote': u'Critical obstacle:\nYou think Mr. Pumpers will sponsor a 50% reduction of his profit?', u'entity_id': 722, u'annotation_id': 9639, u'tag_id': 1369, u'entity_type': u'post'}, {u'quote': u'Plain communities are highly interested in health education and disease prevention.\xa0Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system.', u'entity_id': 713, u'annotation_id': 9638, u'tag_id': 1369, u'entity_type': u'post'}, {u'quote': u"Great summary @Gehan of the work so far in all its human complexity: I'm often reminded of the phrase of encouragement used in 12-step addiction fellowships: 'progress, not perfection'.", u'entity_id': 16896, u'annotation_id': 9645, u'tag_id': 1370, u'entity_type': u'comment'}, {u'quote': u'The organisation needs to ultimately be accountable to diabetes patients. It can\u2019t be a misalignment like we have now with the large producers that mainly have a large profit motor. They just keep diabetics dependent, charge high prices, and don\u2019t innovate much otherwise. Prices went up by 1000%, even though production got cheaper.', u'entity_id': 38856, u'annotation_id': 11872, u'tag_id': 1371, u'entity_type': u'post'}, {u'quote': u'With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women\u2019s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.', u'entity_id': 6376, u'annotation_id': 9652, u'tag_id': 1371, u'entity_type': u'post'}, {u'quote': u"We hope our work will have several effects. First, by enabling more production of insulin by more groups, it can increase competition in the market for insulin, which is currently dominated by 3 large manufacturers who face\xa0criticisms of acting as an oligopoly and lawsuits credibly accusing them of illegally colluding to fix prices. Increased competition might quickly lower costs, bringing insulin into reach for more people, and decentralized production might avoid problems with supply chains reaching parts of the world where it's currently uneconomical to ship centrally-produced insulin. Second, in the longer term, reducing profits from sales of insulin could help to shift economic incentives towards developing better treatments, and ultimately a cure, for diabetes rather than the\xa0highly costly and inconvenient chronic treatment that those with diabetes must currently live with. This should synergize with the third effect, mentioned before, of making it easier to experiment with biologics by putting the tools for protein production and purification in more hands.", u'entity_id': 859, u'annotation_id': 9651, u'tag_id': 1371, u'entity_type': u'post'}, {u'quote': u'A group of citizen scientists at Counter Culture Labs, a hacker space in Oakland, California has been developing an open-source protocol to make insulin for about a year and a half. The world needs more economical sources of insulin because 1 in 2 people who need it lack access to insulin worldwide, and this burden falls disproportionately on the poorest communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale\xa0groups working in distributed fashion\xa0to experiment with and produce other biologics.', u'entity_id': 859, u'annotation_id': 9650, u'tag_id': 1371, u'entity_type': u'post'}, {u'quote': u'Documentation is expensive and nobody is paying us for it" is a completely acceptable argument. No one can fault an open source project for bad or missing documentation, only praise it when it does it right.', u'entity_id': 12671, u'annotation_id': 9649, u'tag_id': 1371, u'entity_type': u'comment'}, {u'quote': u"I'm optimistic about the uptake of the project by the community here. The main challenge\xa0that I see now for us is the\xa0local coordination cost\xa0(Ghent or Belgium level TBD).\xa0I've (tried to) set up, participated in and observed a few similar\xa0local research collaborations. They all had high coordination costs. This\xa0insight comes from\xa0scientific fields that are way less of a pain than biotech/pharma, so I can't see it turning out\xa0easier than expected. Another challenge is\xa0gathering relevant insights in terms of process to have some insights at the end of the road. More so when you haven't set it up right at the beginning: having to change process during the project is costly.", u'entity_id': 25366, u'annotation_id': 9648, u'tag_id': 1371, u'entity_type': u'comment'}, {u'quote': u'I remember, as a child, my parents used to buy plenty of super expensive devices, as computer headsets, mice, keyboards or having to travel back and forth between clinics and private medical studios to have access to the \u201clatest\u201d rehabilitation techniques. After having hacked wheelchairs, remote controls for doors and televisions inside our house and having realized several other robotic contraptions, I realized that achievement of independence through the use of one\u2019s own body is one of the most gratifying experiences everyone could hope for, that\u2019s how the idea of creating an exoskeleton to be used in everyday\u2019s life was born.', u'entity_id': 806, u'annotation_id': 9647, u'tag_id': 1371, u'entity_type': u'post'}, {u'quote': u'Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.', u'entity_id': 16456, u'annotation_id': 9646, u'tag_id': 1371, u'entity_type': u'comment'}, {u'quote': u'Paola:  my theory is that collaboration is super expensive. Is should be paid because it is a lot of investment. We can convince foundations or orgs to pay people to collaborate.', u'entity_id': 38786, u'annotation_id': 11892, u'tag_id': 1371, u'entity_type': u'post'}, {u'quote': u"50% of individual bankruptcies are due to a medical bill. More than 50% of Americans can't cover the bill for an ER", u'entity_id': 38787, u'annotation_id': 11881, u'tag_id': 1371, u'entity_type': u'post'}, {u'quote': u'More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.', u'entity_id': 25049, u'annotation_id': 9655, u'tag_id': 2419, u'entity_type': u'comment'}, {u'quote': u"Here it is: there is a positive correlation between being good at different things, like thinking, prepping and executing in your scheme. Smart, hard working people tend to be better on all three (or n-) dimensions with respect to others. So, I very much share @Noemi 's point of view: when we meet an interesting person, we try to imagine a role for her, then try to create the conditions for us to be able to offer her that role. But, at the same time, the role is embedded in the\xa0project,\xa0not in the organisation. People can try their hand at roles, then maybe move on to different ones in the next project.", u'entity_id': 20914, u'annotation_id': 9654, u'tag_id': 2419, u'entity_type': u'comment'}, {u'quote': u'What I found that works is treating everything as a project in and of itself and assigning roles within the project. A making of sales, an event, a funded project, anything.\xa0In another one, roles can change, but as long as you have someone acting as a PM with that skillset (probably a prepper?)\xa0that takes on the\xa0responsibility to think about\xa0roles\xa0and enable them in the project team.', u'entity_id': 15147, u'annotation_id': 9653, u'tag_id': 2419, u'entity_type': u'comment'}, {u'quote': u't is often the case in the UK that fundraising from grant making charities is tied directly to projects. It is very hard to get funding to cover ongoing overheads, and business expenses.', u'entity_id': 24694, u'annotation_id': 9657, u'tag_id': 1373, u'entity_type': u'comment'}, {u'quote': u'So about the host you pointed out an interesting thing, the model that I described is focussed more on projects and travelers than on hosts.\xa0\nI was thinking about something like having the host deciding a single project to "pledge", and it will gain 1 extra day on the crowdfunding platform.\nThis will create an incentive to find more accommodations and will engage more hosts.\xa0\nMaking host deciding in large part where the money generated through their apartment goes risk to create a system where people support the project of their friend or something that they have an interest in.. But of course, it\'s possible to imagine also another way to let hosts support more a certain cause.', u'entity_id': 23217, u'annotation_id': 9656, u'tag_id': 1373, u'entity_type': u'comment'}, {u'quote': u'Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues? Can we look at Care as something to cultivate rather than to delegate?', u'entity_id': 837, u'annotation_id': 9659, u'tag_id': 1374, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 9658, u'tag_id': 1374, u'entity_type': u'post'}, {u'quote': u'Money or money\u2019s worth? We think of property as a thing. The development model in the UK is that you buy land, let it increase in value and sell it off. Land as a commodity. If you break down land, there are certain elements. First: rights of use (fishing, grow crops). Second: rights to fruits of use of land: who gets them. Mortgages: you\u2019re giving the banks the fruits of the use of the land. Third: right to keep somebody out, exclusion. These three rights can constitute the sharing of surplus.', u'entity_id': 38786, u'annotation_id': 11894, u'tag_id': 1375, u'entity_type': u'post'}, {u'quote': u"Hey @Damiano,\xa0\nI like your questions and experiences with fairbnb. I've also been thinking about this topic and share some ideas and perspectives on\xa0http://creatingnewrealities.co/creating-new-realities/.\xa0\nMy perspective is that there seem to be natural relationships to property and things, even if they are temporal. So I'd like to introduce this element of relationship into the equation for commons. I'm also interested in exploring this topic further and create a software/ community/ commoncreation tool to support the natural relation to our creations and possesions.\xa0\n\nAnother aspect that relates to this is the topic of access of ownership. Which is another way of relating. I'd like to experiment with this in the forms of networks and platforms. Curious how you feel!", u'entity_id': 19865, u'annotation_id': 9660, u'tag_id': 1375, u'entity_type': u'comment'}, {u'quote': u"What I make of this is that it's not about choosing between the open source or current proprietary\xa0code/technology approach. It's clear to me that both do things well and other things wrong\xa0and that an ideal situation lies somewhere in between.\n\nI find it\xa0is recurring when the open tech/science ideas meet\xa0traditional ideas that the discussion is seldom held around the question: how can the different approaches\xa0learn from each other, in order to implement a better solution?\xa0Rather, it is usually about what approach is the best as is.\xa0Result:\xa0boring discussion and no real progress.\n\nHow can we get to a situation where this conversation is not about an ideal solution, but about\xa0finding an ideal solution?\n\nPing @Alberto\n\n@Eireann_Leverett\n\n@trythis\n\n@Rune", u'entity_id': 27802, u'annotation_id': 12983, u'tag_id': 2164, u'entity_type': u'comment'}, {u'quote': u'I can\'t really answer your question "Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals?" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms.\nAs for " Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer\'s names? Not sure, but couldn\'t you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product?\nOf course I agree that such probing questions need to be asked, and you can\'t expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome.\nHowever, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term.\nLastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto\'s commen', u'entity_id': 21955, u'annotation_id': 9662, u'tag_id': 2164, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\xa0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references", u'entity_id': 21205, u'annotation_id': 9661, u'tag_id': 2164, u'entity_type': u'comment'}, {u'quote': u'Wow, this is great news indeed. Welcome @Eireann_Leverett !\xa0\n\nI was at that talk at 32C3. It was a real eye opener. It\'s all very good and well to make fun of the Internet of Things: my favourite is the Twitter account Internet of Shit (https://twitter.com/internetofshit), that churns out a sad/hilarious/scary gallery of smart diaphragms, Internet-connected pet feeders that starved your cat to near-death because the server went down ("It\'s literally just a timer! WHY does it have to be online? Oh, right, so that they can show me cat food ads"), and keyboards that predict your next keystroke and leak all your keylogs all over the Net.\xa0\n\nBut when you are running that stuff\xa0inside your body,\xa0that\'s where it gets a lot less funny.\xa0\n\nI love this idea:\n\npreparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\n\nA sort of FAQs, of checklist, if I understand correctly.\xa0Does it make sense to try and prototype this at one of the Open&Change events in the fall?', u'entity_id': 10583, u'annotation_id': 12984, u'tag_id': 1377, u'entity_type': u'comment'}, {u'quote': u'Many people don\u2019t have access, it\u2019s bad in the US. Only a few companies have the oligopoly on production globally (US, France, Denmark based).', u'entity_id': 38856, u'annotation_id': 11863, u'tag_id': 1377, u'entity_type': u'post'}, {u'quote': u'I am wondering, the case of CRISPR the issues are just on ethics and safety? Or behind there is the need of protection of biotechnology industry. \n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentopen science\n  \n    \n    Edit\n    Delete\n  \nNo Commentbiohacking\n  \n    \n    Edit\n    Delete\n  \nNo Commentregulation\n  \n    \n    Edit\n    Delete\n  \nNo Commentopen hardware\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 37593, u'annotation_id': 11829, u'tag_id': 1377, u'entity_type': u'comment'}, {u'quote': u'Spoken like a true hacker! Welcome, @thomasmboa, and thanks. This is one hell of a post. I am  intrigued that you view WHO-defined standards as "the capitalistic system": I think WHO would disagree, mostly in good faith, but I also think you are mostly right. Standards are classic (anti) competitive weapon \u2013 I wrote a paper about it myself, in a very different context, almost 20 years ago.', u'entity_id': 37488, u'annotation_id': 11807, u'tag_id': 1377, u'entity_type': u'comment'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11777, u'tag_id': 1377, u'entity_type': u'post'}, {u'quote': u'The goal is first to make normal human insulin\xa0using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the', u'entity_id': 26033, u'annotation_id': 9669, u'tag_id': 1377, u'entity_type': u'comment'}, {u'quote': u"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results:\xa0common decency is no longer enough and one has to have grit. In other words, I feel\xa0more and more that any ambitious effort to lead to\xa0greater equality, access, fairness in the world needs to become somewhat\xa0political and build consistent support behind them", u'entity_id': 6933, u'annotation_id': 9668, u'tag_id': 1377, u'entity_type': u'comment'}, {u'quote': u"I've met \xc9ireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content.\nThen I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff.\n\xc9ireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs\xa0on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann\u2019s years of assessing devices for security holes, they wouldn\u2019t normally be \u201callowed\u201d to investigate the security of such devices.\nThis implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable.\nI suggest you watch this great video from 32C3, where Marie and \xc9ireann tell about their journey.\nObviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it.\nBut that's not all - \xc9ireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is \u201cSafer. Sooner. Together.\u201d\nHe contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\nFinally, \xc9ireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.", u'entity_id': 712, u'annotation_id': 9667, u'tag_id': 1377, u'entity_type': u'post'}, {u'quote': u'The general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.', u'entity_id': 523, u'annotation_id': 9666, u'tag_id': 1377, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 9665, u'tag_id': 1377, u'entity_type': u'comment'}, {u'quote': u'(Issues with stuff like law getting in the way of common sense hacking with pacemakers cos of stupid patent laws / lack of open software ?)', u'entity_id': 10261, u'annotation_id': 9663, u'tag_id': 1377, u'entity_type': u'comment'}, {u'quote': u"Another example where functional grating is used: Prosthetics\n\nUses distributed force: see goats' feet as a reference/description of the principle used to build prosthetics.\n\n\nFeets that are hard metal pads (hard actuators) does not allow you to compensate for unexpected events.\nAlso flies' spatulated hairs on their feet. N++1. Aron Parnell tries to mass manufacture.\n\n\nLast example: Replacing atmospheric preassure in space suits with pneumatic preassure, shrinking them to fit human body. Problem: Spring effect. Solution: Don't make mechanical counterpressure suit in one go, but gradually? (not sure I got this right)", u'entity_id': 5136, u'annotation_id': 12985, u'tag_id': 2166, u'entity_type': u'post'}, {u'quote': u'WeHandU tryes to solve the problem everyone with disability encounters: prosthesis are not personalized and often need to customized in regard of each personal need.', u'entity_id': 835, u'annotation_id': 9671, u'tag_id': 2166, u'entity_type': u'post'}, {u'quote': u'A meeting with Rune and other collaborators turned in a interesting discussion about including patients in the process of manufacturing hands, or prothesis to grab forks and spoons to make people who miss some fingers, the hand or an arm, autonomous with eating. There are so many different applications and by 3D print it seems a viable way to save costs and have a just in time do it yourself scalable production of whatever the patient needs.', u'entity_id': 839, u'annotation_id': 9670, u'tag_id': 2166, u'entity_type': u'post'}, {u'quote': u'The proof came in May 2011 and the infamous \u2018indignation\u2019 or \u2018occupy the squares\u2019 movement. I was there from the very first day, and although it was very amateuristic and problematic in various levels (and has been widely exploited for political gain) still, it was a strong, life-changing experience for most of us involved. I had never before (except from history books) seen Greeks come together in such ways and with such plurality and diversity. God-fearing pensioners working alongside young budding anarchists; apolitical housewives and disillusioned political-party members, all stepping out and taking initiative, organising, sharing openly their feelings and their food, showing solidarity, standing hand-in-hand to face the teargas and police brutality... The zombies had a heart!', u'entity_id': 559, u'annotation_id': 9672, u'tag_id': 1379, u'entity_type': u'post'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11774, u'tag_id': 1924, u'entity_type': u'post'}, {u'quote': u'Prototyping policies\xa0by monitoring and evaluating this experimentation.', u'entity_id': 819, u'annotation_id': 9674, u'tag_id': 1380, u'entity_type': u'post'}, {u'quote': u"Hi @Matteo, nice to meet you and welcome to opencare.\nLet us know how we can support this and do share if anything comes out of this seminar that speaks about communities' role and contributing to better services. I hope there will be a chance for opencare to provide some serious reality checks, and from my experience that tends to happen when you have more than one perspective - policy, citizen, interest groups etc..", u'entity_id': 8335, u'annotation_id': 9673, u'tag_id': 1380, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 9675, u'tag_id': 1381, u'entity_type': u'post'}, {u'quote': u'I have one such example and it seems that the more distant relatives or friends\xa0posting are trying to support those closest "in rank", albeit from afar. It\'s almost as if trying to show that\xa0they care, maybe for the same reason @Patrick_Andrews mentioned - because they don\'t know how else.', u'entity_id': 12425, u'annotation_id': 12986, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u", @Shajara ! This school of yours\xa0sounds really advanced. One thing I don't understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?", u'entity_id': 14631, u'annotation_id': 9688, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u"Hello, @Alberto ! I think I may have not been clear in that while my school takes classes through the online platform we do live together during the school year. Though you do raise an interesting point of how to facilitate a similar sense of community through online communities. Have been a memeber of a few I think a big mistake a lot of groups try and do is replicate in person activites, like a bunch of people just hanging out through webcam. And to me that will always fall short of the live in person dynamic. I think one answer is to organizng physical met ups based off of promitiy of people, which works to an extent.\n\nBut for me the best online communities I've been in have used the fact the memebers are so spread out to there advantage. I think a good example of this is Under 30 Changemakers, which hosts discussions\xa0and training through google hangouts. Instead of having broad web-chats they pre-choose discussion topics based off of community interests or world events and invite their memebers to bring in their perspective. That way people come in already invested in the topic and feel more connected to the community by interacting with members who share their passions. \xa0Also, another activity that seems to go well it when people sign up to be matched with another random member for a skype session. The excitment of not knowing who you'll met but that you have this one community incommon is pretty enaging.", u'entity_id': 17278, u'annotation_id': 9687, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u"Memorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.", u'entity_id': 11904, u'annotation_id': 9686, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u'I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.', u'entity_id': 548, u'annotation_id': 9685, u'tag_id': 1383, u'entity_type': u'post'}, {u'quote': u'I would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.', u'entity_id': 30441, u'annotation_id': 9684, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u'"have a distributed presence as a compliment to the physical space itself".', u'entity_id': 13704, u'annotation_id': 9683, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u'What if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?', u'entity_id': 8632, u'annotation_id': 9682, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11456, u'annotation_id': 9681, u'tag_id': 1383, u'entity_type': u'comment'}, {u'quote': u'Common experiences \u2013 if I have been through an experience, am I more equipped to support the other facing that experience?', u'entity_id': 5405, u'annotation_id': 9680, u'tag_id': 1383, u'entity_type': u'post'}, {u'quote': u'The connexion depends on each particular case \u2013 dependency? There is a very personal experience.\xa0 It is very different when your web of personal experiences are involved.\xa0\n\n\n\u2192 The relationship to distance and care is not as simple; it may be easier to care for someone who is not personally involved.\xa0\n\n\n\u2192 Idea of proximity and whether it is helpful or not', u'entity_id': 5405, u'annotation_id': 9679, u'tag_id': 1383, u'entity_type': u'post'}, {u'quote': u"Hi @ybe. It's a long post now so excuseme if I've skimmed too much. As @Alexander_Shumsky posted the WeHandU\xa0we were talking about the importance of psycological aspects of assistive technology. My experience is that people having sustained a stroke, spinal cord injury or living with MS have a need to talk about it. I's not what you intend by trauma, but I think it could be interesting include your expertice in a 360* service.", u'entity_id': 27812, u'annotation_id': 12987, u'tag_id': 2168, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 9691, u'tag_id': 1385, u'entity_type': u'post'}, {u'quote': u'Certainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice.', u'entity_id': 29955, u'annotation_id': 9690, u'tag_id': 1385, u'entity_type': u'comment'}, {u'quote': u'I have been working as a trauma therapist since 10 years. It\u2019s not an area that many psychotherapists decide to explore in their daily practice, but ever since I can remember it was the most appealing area of psychotherapy for me. And one that is highly unexplored and somehow underrepresented.', u'entity_id': 740, u'annotation_id': 9689, u'tag_id': 1385, u'entity_type': u'post'}, {u'quote': u"http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).", u'entity_id': 26938, u'annotation_id': 9692, u'tag_id': 1386, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 26064, u'annotation_id': 9712, u'tag_id': 1388, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 24181, u'annotation_id': 9711, u'tag_id': 1388, u'entity_type': u'comment'}, {u'quote': u'The comment of the Senior suffering from diabetes is relevant to another discussion here on the platform. The Open Insulin team\xa0in Belgium is thinking of how to do educational outreach around diabetes, because knowledge on the topic is not very widespread. Here is some more info on Open Insulin\xa0and pinging @NiekD who proposed it and is also a passionate science communicator.', u'entity_id': 33787, u'annotation_id': 9710, u'tag_id': 1388, u'entity_type': u'comment'}, {u'quote': u"Since resigning from my formal employment, I've begun developing concepts using Street Arts and collaborations to install live arts installations driven toward Public Engagement. Now, Public Engagement as a term itself is not void of ambiguity and misuse for the purpose of funding or green-stamping our professional works. This isn't anyone's fault as it's a field that is developing. We should strive for full participation in our works, not merely using the term as a stamp of approval. My project aims to forge relationships with very different bodies of knowledge and social status, i.e. biomedical professionals/scientists, community members and artists, all of whom I argue have equally important and necessary knowledge to combat illness, increase the status of general Public Health and, simply put, fight a battle using a full arsenal of knowledge and weapons.", u'entity_id': 33730, u'annotation_id': 9709, u'tag_id': 1388, u'entity_type': u'post'}, {u'quote': u'Finding the right balance to sustain a healthy community, share knowledge, and support co-creation is hard. And funding around grassroots citizen science can be particularly challenging, if not unfair: researchers that study us receive more funding than we do ourselves. And, whilst large amounts of public science funding are allocated to \u2018citizen science\u2019 at the both European and National levels, there is very little possibility for non-institutional citizen science communities to access it.', u'entity_id': 6427, u'annotation_id': 9713, u'tag_id': 1389, u'entity_type': u'post'}, {u'quote': u'The Foodsharing idea (https://project.yunity.org/about_foodsharing in English) just makes so much sense.\xa0\n\nI am not completely sure we can classify it as "care", though. But perhaps it\'s not even \xa0that important.\xa0\n\n@Paul_Free, I know there are plans of community (vegetable)\xa0gardening as part of the city of Galway\'s bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?', u'entity_id': 9428, u'annotation_id': 12990, u'tag_id': 1390, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 9721, u'tag_id': 1390, u'entity_type': u'post'}, {u'quote': u"@Bernard I am looking at the Transition Galway website:\nSince October 2012 we have been working on the Transition Galway community garden [...]\xa0\xa0It\u2019s a nice wee plot, kindly offered by the school to our group. Together with the pupils, parents, teachers and members of the community we have been growing food and improving biodiversity.\nA TG-school collaboration around gardening, biodiversity and community building that's been going onto five years. That's impressive. This is how you build a culture of teamwork and societal resilience. If you guys can start a community garden and keep at it for five years, you can probably get ambitious. Where do you think the stamina come from?", u'entity_id': 19534, u'annotation_id': 9720, u'tag_id': 1390, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 801, u'annotation_id': 9719, u'tag_id': 1390, u'entity_type': u'post'}, {u'quote': u"I hope we can 'break out' more with these ideas, especially with the next generation!  I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)!  It is clear that the details are important, but especially having a valid basis of comparison - the 'controls' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of 'care' for us all - to help avoid wasting not only future resources but especially suffering.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentconnecting with schools\n\n  \n    \n    \n      Cancel\nSave", u'entity_id': 38981, u'annotation_id': 11737, u'tag_id': 1391, u'entity_type': u'comment'}, {u'quote': u"In terms of what I specifically learned, I realised I never answered you here...  Because I really would like to get more people doing citizen science, and especially help them become aware of how easily we might be able to help our cells avoid too much damage, also for future generations, I guess one personal thing I (re)learned was how difficult it is to push ideas onto people directly.  Even if they seem very nice.  For one example, many times I would have liked to advice people to skip their cigarette break (since cigarette smoke not only can directly damage DNA but prevent its repair!), but I guess there was only one person that I even pointed this out to (very gently, I think)...  I believe people have an idea that there are so many bad things out there, that one more makes no big difference, and of course adults are allowed to make their own choices.  Nonetheless, I hope that if they could really understand 'why' such things are bad for us all, and the environment - based on this idea of 'dynamic genomic integrity' getting disrupted, things could change for the better... (here is the link to my public service association, http://www.genomicintegrity.org/  just in case someone would like more info in this regard.  The summary flyer btw is available already in 10 languages, but I would love to make more translations, and would also love more 'flags' to show up the site's counter...  I also want to point out to all the artistic people out there that the AGiR! Art Call is still open!!)", u'entity_id': 38966, u'annotation_id': 11723, u'tag_id': 1391, u'entity_type': u'comment'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 9723, u'tag_id': 1391, u'entity_type': u'post'}, {u'quote': u"@Gentlewest hello and nice to meet you, I don't think I've met anyone from Cameroon until now. Small world, this Internet thing How do you see the change in behavior happening? Is anybody speaking publicly about this?\nOne example of intervention\xa0which you might find useful, although i don't know your background, is throuhg art. @Nabeel_p \xa0is working on awareness raising for public health issues and sets\xa0up large public art to get the message across. Some of us\xa0found it inspiring - have a look here? Nabeel do you see something like that tailored for reproductive health?\xa0\nAlso, guys: how much exposure of taboo is taboo?", u'entity_id': 8524, u'annotation_id': 9722, u'tag_id': 1391, u'entity_type': u'comment'}, {u'quote': u'a side effect of doing culture is (over time) a reduction in treatment of acute health conditions.\xa0\nI am starting to think that this is where most of the impact of communities on care comes from. Communities can "corral" us into avoiding destructive choices (heavy drinking, overeating...). They provide support in wellness/preventative activities, and that reduces human and financial costs of havingn to treat acute afflictions down the line.', u'entity_id': 17145, u'annotation_id': 9736, u'tag_id': 1392, u'entity_type': u'comment'}, {u'quote': u'at "Our Place" event we brought yoga by Green Lotus Galway (GLG) and circus workshops for kids by Hoopla Troupla\xa0 (social inclusion in a socio-economically disadvantaged area).\nat What Now? A Cultural Weekender, there was Yoga by GLG (50% of donations went to familycarers.ie), mandala making by Cos\xe1in (community wellness group) and teen open-mike by For\xf3ige, tribal dancing, reclaimed pallet furniture as part of design exhibition and much more. We\'ll be revamping our website in time and a fuller picture of that will appear.\nat preMonastery (report on website soon), which itself was semi-retreat in nature, yoga and mental wellbeing featured. A preliminary looks at the feedback forms suggests positive effects wellness of participants. Outcomes from preMon include a collaboration between Cos\xe1in and Pais\xfain F\xe1isuin, where they ran an event and raised \u20ac1440.\xa0 And Cos\xe1in doing an art therapy retreat in 2 weeks with Alan, our host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources.\nA\xc1E originated as an arts group but has been looking at culture in the broader sense, integrating health and physical environment/ecological sustainability. A\xc1E\'s arts reviews and events are key to engagement, facillitating connection of groups and situations of care at local level.\xa0 And celebration:) David\'s statement is from June 2015, it starts with arts, then evolution:)', u'entity_id': 14308, u'annotation_id': 9735, u'tag_id': 1392, u'entity_type': u'comment'}, {u'quote': u"So what's going on with prevention of unwanted pregnancies? Public health people I have talked to tend to shrug and say it's endemic. The window of opportunity for stupid and careless behaviour\xa0is a little too wide, the drive for instant gratification over prudence is literally a biological imperative, and even the best contraceptives only have a 99.99% effectiveness. If, say, in Italy you have about 20 million couples, if 10% of them are having sex tonight and all of them use contraception, you are going to get 200 unwanted pregnancies tonight,\xa0in just one European country. Best you can do is reduce the incidence of such incidents, but no human society ever achieved zero unwanted pregnancies.", u'entity_id': 24734, u'annotation_id': 9734, u'tag_id': 1392, u'entity_type': u'comment'}, {u'quote': u'differentiate ourselves from other "wellness groups" which focus on yoga and massage and nutrition.', u'entity_id': 22039, u'annotation_id': 9733, u'tag_id': 1392, u'entity_type': u'comment'}, {u'quote': u'wellness, exercise, nutrition\xa0are the low hanging fruit, the place where you are likely to get most results per unit of effort. Why not stick to them?', u'entity_id': 20474, u'annotation_id': 9732, u'tag_id': 1392, u'entity_type': u'comment'}, {u'quote': u'public health infrastructure with clinics and hospitals', u'entity_id': 521, u'annotation_id': 9731, u'tag_id': 1392, u'entity_type': u'post'}, {u'quote': u'public health infrastructure with clinics and hospitals', u'entity_id': 521, u'annotation_id': 9730, u'tag_id': 1392, u'entity_type': u'post'}, {u'quote': u'I would like to see politicians say how they care for themselves, I would like to see them living a lifestyle which shows people how to live a healthy life.\u201d', u'entity_id': 494, u'annotation_id': 9729, u'tag_id': 1392, u'entity_type': u'post'}, {u'quote': u'health and wellbeing are properties of social-ecological-context and not a something you "deliver" like a pizza.', u'entity_id': 10231, u'annotation_id': 9728, u'tag_id': 1392, u'entity_type': u'comment'}, {u'quote': u"Previously office building occupied by the French community which had been vacant for 15 years. Groups of squatters moved in and made a deal with the owner to run different workshops - bike fixing, woodwork, IT etc.\nSome interesting facts from his paper:\n-social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands\n-7 % of houses totally empty\n-1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years\nFrom squatting to a participatory process -\xa0 a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don't have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.\xa0\xa0In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space!\nIt's an office building, which means people can change the layout easily.\nDifference between buildings for profit and the testcase of 123:\nProfit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their 'illegal' status it isn't praised.\nLoic showed a detailed distribution of the types of spaces - at each floor you'd have facilities, workshops, library + distribution of private and communal space.\xa0\nImportant detail: Stairs instead of working elevators as a social control mechanism.\nLoic is trying to give more visibility to housing solutions - it's not easy, take good contact with the owner! First you squad, then you talk.", u'entity_id': 541, u'annotation_id': 9739, u'tag_id': 1393, u'entity_type': u'post'}, {u'quote': u'Alberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and\xa0one of the units in each building is rented to the "community manager" tasked with working on social ties between people. Not sure about details, but it seems it\'s financed by Casa Depositi e Prestiti.\xa0Does your project have anything to do with it\xa0or better yet: do you see your project\xa0coming to influence social policies in Italy? It seems it\'s 8 years along the line and you guys seem to have great results to show as to what the future looks like.', u'entity_id': 8575, u'annotation_id': 9738, u'tag_id': 1393, u'entity_type': u'comment'}, {u'quote': u'However, it also means you guys are very vulnerable. Noemi is right on the money: if an "Uber for health" were to emerge, it would be sued into a smoking hole at the first signs of scaling. Which makes me think that\xa0not\xa0scaling is a better solution for survivability of open care: sueing thousands of small initiatives is harder and more costly than going for the one Uber. Hmmm.', u'entity_id': 19025, u'annotation_id': 9765, u'tag_id': 1397, u'entity_type': u'comment'}, {u'quote': u"While building trust in the service while ofering affordability and humane treatment\xa0is definitely a plus, the questions remains and it's for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available? We have great insights, yet risk running completely unprotected. The more they grow effective or meet a growing demand, the more attention they draw, the more concurential they become, the more they risk being antagonised by systems on more-or-less valid concerns. Uber\xa0being exhibit A..", u'entity_id': 18617, u'annotation_id': 9764, u'tag_id': 1397, u'entity_type': u'comment'}, {u'quote': u'An actual example, a\xa0few years ago our city hall gave all the green spaces in the city for "rental" to firms willing to maintain them - so the firms took their employees out for planting weekends. After that they get their name on the green space as the "Carers" of the space.', u'entity_id': 18447, u'annotation_id': 9763, u'tag_id': 1396, u'entity_type': u'comment'}, {u'quote': u"We're working on several projects at the moment. I've got increasingly interested in Business Improvement District concept over the last couple of years, which existed since the 1960\u2019s/70\u2019s in the Northern America, and concentrated on socio-economical regeneration for business and communities as a whole. The combination of a geographical zone including businesses, community, people and the collaboration of those elements creating successful public, private and citizen partnerships,", u'entity_id': 716, u'annotation_id': 9762, u'tag_id': 1396, u'entity_type': u'post'}, {u'quote': u'To distribute the Eco-Coolers, we teamed up with Grameen Intel Social Business Ltd.\xa0because they work in a lot of villages in Bangladesh [Editor\u2019s note: Grameen Intel is social business platform that\u2019s a partnership between NGO\xa0Grameen and the company Intel]. We sent our teams out to the villages where Grameen Intel works to teach people how to make our Eco-Coolers.', u'entity_id': 33744, u'annotation_id': 9761, u'tag_id': 1396, u'entity_type': u'post'}, {u'quote': u'Business Improvements Design Belgium (BIDs): they are about creating a new geographical zone and linking community businesses to it, ideal for private - public partnerships.', u'entity_id': 541, u'annotation_id': 9760, u'tag_id': 1396, u'entity_type': u'post'}, {u'quote': u"Hello again, @Altamirula .\xa0Your ideas about the future of learning seem more than reasonable to me, and in fact just yesterday I was at a conference where an educational policy maker kept referencing the idea of schools as learning hubs -\xa0questioning how to get there. Those of us in the room thought\xa0there's little hope for \xa0a radical makeover, except maybe through public-private partnerships - if you do like TOPIO in Greece - the girls in Thessaloniki do neighborhood youth empowerment through artistic expression, pretty beautiful it seems, hav a look?\nWhat stage is Future Tools at, can we help in any way? Are you in Spain now? I can't tell from the post..", u'entity_id': 8262, u'annotation_id': 9759, u'tag_id': 1396, u'entity_type': u'comment'}, {u'quote': u"Whaaa that would be a dream, but in Brussels for 'safety reasons' we can't BBQ in any park in the region, i'm really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don't have any open air pool in Brussels either", u'entity_id': 18277, u'annotation_id': 12993, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14783, u'annotation_id': 12992, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14908, u'annotation_id': 9758, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29086, u'annotation_id': 9757, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19759, u'annotation_id': 9756, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u"Hey @Noemi, this is just something cultural that people have always been doing in\xa0Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is\xa0not allowed to cook in public parks any more even though they use\xa0a traditional\xa0portable clay pot for coal/making fire and there is no hasard in cooking open air in such way...\nWhen people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.", u'entity_id': 18382, u'annotation_id': 9755, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 9754, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u"\u201cFrom streetparking to neighborhood parking\u201d: if we want to create free spaces in streets we have to find solutions for the parked cars in the street. When experimenting with Living street the initiators have to find appropriate places for their cars to park. Not just 'around the corner'. We look for under-used parking spaces at shops, companies, railwaystations, ... This can be in the neighborhood or even more remote at 'long distance parkings'. Each time citizens (on a volunteering basis) test this new way of parking and are supported by our network through (e)-bikes, bus/tramtickets, ... The insights and experience we gain here are used by the local city administration.", u'entity_id': 33778, u'annotation_id': 9753, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Public places have to be accessible to all regardless their mobility capacity. The City Administration regulated the matter for new buildings as well as existing ones. The latter faced a variety of unforeseen problems that resulted into a 10% compliance rate in 15 months since the law passed. In the common understanding, this means a public effort not hitting the target, a cracked relationship between the City Administration and private businesses and ultimately disadvantaged people still vulnerable.\nThe story begins in 2015 with the City of Milan to pass the Building Regulation article 77 that required all bars, shops, restaurants and craft activities bordering the road, to provide easy access to people with limited mobility or disabilities (the National Institute of Statistic in 2007 assessed 13.189 people with mobility disabilities in Milan). This normative action was the instrument that City of Milan deployed to overcome architectural barriers and provide universal free access to public places by 2017.\n\nIn November 2016, 12 month after the law passed the City of Milan assessed only 2.000 businesses compliant over 18.000. An article on la Repubblica, the second most read Italian newspaper, by the 5 January 2017, published these data and opened a public discussion on the subject.\nLisa Noja (delegate of the Major for accessibility policies) said: We have to make sure that very quickly all businesses comply. This year we want to get to the full application of a rule of civilization and to do that you cannot only use repressive strategies.\nIt was a beginning of a twist in the Municipal strategy and the start of a speculation about the most effective way to enforce a regulation. The new thinking included working with trade associations, like Confcommercio, as well as promoting campaigns to engage business holders.\nCristina Tajani (City Councillor for labour policies, businesses, trade and human resources) said: places that show attention to the disabled are also easily accessible to children, parents with strollers and the elderly. This does not mean that they will not be submitted to controls, but we want help the business understand that the adjustment should not only be seen as an obligation. It is also a business opportunity.\nThis is when OpenCare approach came handy. Local staff including WeMake was involved and started talking to as many people as possible, to understand what was not working and tentatively get it streight.\nListening\xa0it was vital to start from the pieces of the City Administration that were involved from the beginning like the Major Cabinet, the Urbanistic Department, the Public Soil Occupation Office and lately Urban Economy and Work department. We have understood that the building legislation was conceived in a department and the implementing regulation was written in a different one (and of course published through another one). That gave a lot of room to officers for interpretations and tightening the instructions for businesses to prevent opportunistic behaviors. \xa0\xa0\nIncluding as the collaboration with the trade association got closed we\u2019ve understood more of the problems that businesses are facing to comply with the regulation, such as: high costs, complex red tape, lack of understanding of the most suitable solution and existing solutions too standardized. Since red tape is partially due to complex implementing regulations and the unclear communication follows, we started facilitating a mutual dialogue between pieces of public administration, businesses and associations. Regarding costs and production related problems, we can take it into the arena of manufacturing 4.0 by including also designers, makers, social innovators, businesses and utilizers.\nGoing where innovation beats\xa0we have started organizing an experimentation called Open Rampe (Rampe means Ramps/Slides) in a limited area of the city that has everything it takes. The Quartiere Isola in fact has a functioning District for Urban Commerce, a civic center devoted to urban regeneration, art and crafts workshops (ADA stecca), active businesses and a long tradition of civic participation. Our idea is to engage business individually and through a public event by 11th April. Involving them into\xa0co-design sessions pivoting around their necessities may generate unexpected outcomes.\nDealing with collective intelligence\xa0is what we have just started doing by sharing this story here. Any input from the community could be brought into our experimentation and add value to it. It would be interesting to study this collaboration as it happens and share it.\nThis is where we stand now and the next steps are:\nCo-designing / mobilizing resources\xa0of course we will not predefine outputs, but rather keep the sessions open to any outcomes.\nPrototyping policies\xa0by monitoring and evaluating this experimentation.\nWe are aware that talking about \u201cenforcing\u201d a policy collaboratively may sounds an oxymoron. Since article 77 of the building regulation fits in the EU and the National legal frameworks, it is certainly a top down process.\xa0Nevertheless, the Open care approach might help policy makers, (non)compliant businesses, users and citizens to achieve simpler, cheaper and faster solutions.\nIt would be interesting to know who else has been involved in a similar process and managed it collaboratively. Or not.', u'entity_id': 819, u'annotation_id': 9752, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u'For the participants, the future of care innovation\xa0is closely connected to openess and the availability of public space. Not surprisingly, many people appreciated the power of urban gardening in offering green spaces, but also in building a sense of community in the neighbourhood.', u'entity_id': 736, u'annotation_id': 9751, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u"Where I come from a\xa0funny thing is happening: everyone loves festivals, especially during this time of the year, May-June before students are out of town for holidays. We had very strict regulations about sitting on the grass\xa0in our central park, you know that kind of green space where you really want to spend time in nature but can't because it's too cosmeticized? Nowadays there's Jazz in the Park and the Big Hammock Day and these kinds of events which start as one offs but then create a demand and become a habit. What they have in common is that they start with a big push.", u'entity_id': 18648, u'annotation_id': 9750, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Seriously? In Italy BBQs in the park are big \u2013 well, in Milano at least, now that I think of it I never saw it done in Emilia Romagna. I think the fad was started by the Peruvian community, who moved in in force. There are even web pages on "the best parks to do BBQ in Milan", or Rome, or whatever:\xa0http://www.viaggiamo.it/parchi-dove-fare-grigliate-a-milano/\nThis is fairly typical:', u'entity_id': 17140, u'annotation_id': 9749, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u"I love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.\xa0\n\nProblem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!\xa0\n\nGood luck with the project and keep us up to date!", u'entity_id': 14420, u'annotation_id': 9748, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 683, u'annotation_id': 9747, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 26029, u'annotation_id': 9746, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'But Huis VDH doesn\u2019t fall from the sky. For me, being in good care in the city has always meant having a healthy living environment. To create such a good environment we need good city planners and a great vision on public space. Something Brussels is still lacking...\nOnce upon a time, there was public space.\nFrom 2012\xa0onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn\u2019t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop \xa0further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d\u2019Accroche (part of the project V\xe9lo M2, explained here) in that neighbourhood, hoping to bring them some resilience.', u'entity_id': 520, u'annotation_id': 9745, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u'My name is Erika. With Luca, Jacopo and Alice we started\xa0Dynamoscopio\xa0("those who observe change"). We are a strange mix of designers, researchers, and practitioners of urban transformation. We are anthropologists, architects, economists.\nIn 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty\xa0Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue.\nThe neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in.\nFirst we investigated the area, and put our findings into a documentary film (trailer). As we did so, we fell in love with the local market,\xa0Mercato Lorenteggio\xa0(henceforth ML). This market had a problem: in 2005 a large supermarket had moved into the area. Its competition was driving many local shops out of business \u2013 including several of those in ML. It was clear that the market was on its way out.\nBy then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments.\nWe tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation.\nSo we did several things.\n\n\nWith the shopkeepers, we redefined ML\'s unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People\'s Designation of Origin). This means local products \u2013 Milano is a farming city, with many farms to the immediate south of the city. It also mean "new local" products, for example we sell\xa0teff\xa0used in Eritrean and Ethiopian cuisine.\n \n\nWe made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called "Fai la spesa per la tua scuola" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating.\n \n\nWe mobilized the community on restoring the fa\xe7ade of the ML building. A Milan-based company donated the materials; the local people contributed manpower. Physical work on the space creates ownership and mobilization. Also, it was a great party (timelapse video)!\n \n\nWe pushed the mixed use of ML as a place for culture and socializing as well as commerce. For example, we organize courses of Arabic languages (requested by many migrant families), knitting events, etc. The market has wide corridors, and can host up to 1,000 people.\n \n\nWe moved in ourselves. Dynamoscopio runs a tiny cultural space (20 square meters) inside ML. We offer wi-fi too.\n \n\nIn general, we are trying to reinvent the physical space of ML and the kind of local commerce that it offers.\nWho pays for this? We started out with grants. Milan is home to several charitable foundations, and some of them focus on the poorer neighborhoods. With time, we are moving towards a more sustainable mix of revenue streams. Even the shopkeepers, now, are chipping in: this is great, because it a sign of increased sustainability. Also, the work we do in Lorenteggio is good PR, and it helps Dynamoscopio get clients.\nWe think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. "Taking care" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community.\nWe are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too.\nConsidering, our work with ML is going rather well. In 2012 it was on its way out, with several shops closed: in 2016 all stalls are in use, and the market is thriving. The space has become more beautiful and welcoming.\nStill, there are many things we would like to improve. For example, last year we organized two "swap markets", and they failed badly. Both events were popular, with a lot of people in attendance. But these were people from outside the neighborhood, many of them hipsters. This created tension, because the locals see them as harbingers that they will be priced out of the neighborhood. Another pain point is that we are unable to monitor our impact. Shopkeepers are reluctant to disclose how much money they are making. We do not even have a system to count the number of people present in the market. We would love to have some kind of tool, but somehow this sort of work always gets deprioritized, there is so much to do.\nAlso, we are not sure how much longer we can afford to stay engaged with ML. But we worry. What happens when we stop pushing? Another example: for a while, a guy named Manuel ran a vegetable garden outside ML. People loved it. But when Manuel withdrew, the whole thing dried out. These dynamics look great, but they are not always sustainable.\nDo you know of any similar experience? We would love to compare notes.', u'entity_id': 804, u'annotation_id': 9744, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u"Ce texte est une pastiche qui n'a jamais \xe9t\xe9 publi\xe9 suite au faite que le jour de publication \xe9tait le jour des attentat en France. J'ai rencontr\xe9 Yannick qui m'a propos\xe9 de partager ce texte ici, car comme d'autre id\xe9e la r\xe9appropriation de l'espace commun a comme b\xe9n\xe9fice des gens plus sain d'esprit dans la ville. Voici notre proposition:\xa0\nUne nouvelle Maison du Peuple!\nAujourd\u2019hui est un jour historique pour Bruxelles. Apr\xe8s de longs mois d\u2019incertitude, le conseil communal \xe0 enfin tranch\xe9: le Palais de la Bourse deviendra le lieu commun de tous les bruxellois. Ils ont \xe0 nouveau une Maison du Peuple!\nCe temple architectural est \xe9videmment d\u2019abord un choix symbolique. Apr\xe8s y avoir accept\xe9 la tr\xe8s controvers\xe9e exposition Behind The Numbers glorifiant le n\xe9o-liberalisme, la Ville s\u2019est rendue compte qu\u2019il fallait donner une autre destination \xe0 cet endroit que celle de pure sp\xe9culation commerciale et d'activit\xe9 touristique. En transformant une partie de la Bourse en Maison du Peuple elle redonne une place aux Bruxellois au c\u0153ur du centre historique!\nDonnez la ville aux habitants, et tout le monde s\u2019en portera mieux\nOn ne comptait plus le nombre d\u2019actions contre les plans de la Ville: plates-formes citoyennes, regroupements de commer\xe7ants, actions ludiques diverses... Qui ne se souvient du banc de 30 m d\xe9pos\xe9 au milieu de la Grand place, ou des centaines de gens pique-niquant place de la Bourse, de l'action de revendication des escaliers de la Bourse comme tribune libre d'expression politique lors du KunstenFestivaldesarts? L\u2019espace public \xe9tait devenu un haut lieu de d\xe9bat, mais paradoxalement ne recevait pas d\u2019endroit ad\xe9quat pour le mener (une Agora). La participation ne remuait que du vent, les riverains ne se sentaient pas entendus. La ville \xe9tait taill\xe9e sur mesure pour les eurocrates, les touristes Chinois, avec commerces ouverts le dimanche, tandis que le Bruxellois devait se contenter d\u2019une ville certes prestigieuse, mais sans lieu o\xf9 il fait bon vivre, une ville d'exp\xe9riences individuelles juxtapos\xe9es, atomis\xe9es, sans liens.\nLe Beer Tempel projet\xe9 dans le Palais de la Bourse aura une entr\xe9e par l\u2019arri\xe8re, et c'est tr\xe8s bien ainsi. Mais sans occuper tout l'espace, il comprendra une nouvelle Maison du Peuple, o\xf9 chacun pourrait d\xe9battre de ce qui se passe dans la ville, o\xf9 les initiatives bottom-up pourront cro\xeetre, de nouvelles id\xe9es pour une ville meilleure surgir. Il importe de faire de ce lieu symbolique qu'est la Bourse un espace de libre d\xe9bat, une Agora. Il s'agit de rendre la ville aux habitants pour que tout le monde en profite, pour que l\u2019habitant s\u2019y sente bien. Alors le touriste, le commer\xe7ant et tout les autres s'y sentiront bien aussi.\nLa Ville esp\xe8re avec cette Maison du Peuple calmer les tensions palpables par le biais d\u2019une communication plus ouverte: un endroit de rencontre et d\u2019\xe9coute sera ainsi am\xe9nag\xe9 dans le b\xe2timent. En revitalisant de cette fa\xe7on la Bourse, en lui donnant une \xe9chelle humaine, la Ville aide \xe0 fabriquer le tissu social des prochaines d\xe9cennies. Bien s\xfbr, le touriste y aura sa place, car la Maison du peuple sera ouverte a tous. Mais nous ne voulons pas que la centralit\xe9 habit\xe9e soit confisqu\xe9e par une vitrine \xe0 touristes. A la Maison du Peuple, les touristes pourraient rencontrer des Bruxellois, trouver des bons plans pour une visite de Bruxelles vue par ses habitants, trouver le plaisir culturel de ville plus qu'une consommation gr\xe9gaire.\nUtopie et R\xe9alit\xe9? \nEt maintenant vient la chute: on est encore bien loin de cette possible utopie \xe0 Bruxelles et c\u2019est bien dommage. On dirait que la peur panique du d\xe9sordre social jette la Ville dans les bras de la soci\xe9t\xe9 du spectacle, attractive aux investisseurs, par la privatisation de l\u2019espace public, le non-d\xe9bat constant avec les acteurs locaux, un trafic encore plus monstrueux, et de plus en plus de gens en d\xe9saccord avec chacun mais encore plus avec la politique bruxelloise...\nUne souffle nouveau, un bref moment d\u2019air frais pourrait nous sortir de l\xe0, donc amis Bruxellois, politiciens donnez-nous cette Maison du Peuple \xe0 la Bourse.\xa0\nSinon on la prendra!", u'entity_id': 784, u'annotation_id': 9743, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 27791, u'annotation_id': 9742, u'tag_id': 1395, u'entity_type': u'comment'}, {u'quote': u'The secret of living decently in the city is to manage space and time differently, but she is aware that it becomes more difficult. Public space isn\u2019t anymore a space for everybody, but a space for nobody. A cleaned-out space that only looks pretty. Because our fascination for more sterile environments we lost the skills to interact with each other. Who needs to interact with your neighbour if you have all the space you need inside your private home. Living small could bring back the necessity of interaction and borrowing stuff from your neighbours, helping create a much-needed social fabric to your neighbourhood.', u'entity_id': 745, u'annotation_id': 9741, u'tag_id': 1395, u'entity_type': u'post'}, {u'quote': u'Hey @Yannick , thanks for your patience in answering all these questions. The question by @Eric_Hunting reminded me of a previous experience with a project called the unMonastery. We had the problem of developing a physical space that was meant to connect to a broader community, and the community was physically far from the space.\xa0\n\nWe discovered that publishing the plans made everything clearer and more concrete, and generated a lot of excitement and emotional attachment. People also started to suggest really cool ideas for furniture.\xa0\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 27803, u'annotation_id': 12994, u'tag_id': 2173, u'entity_type': u'comment'}, {u'quote': u'I feel quite tempted to stop by for the OpenVillage festival in Brussels. From what I got of your website and the short video clips, it\'s a gathering of similarly switched on people as during the Open State of Politics Camp. Dealing with key questions our modern societies and economies are up against. The role of community is becoming more and more important for moving on from a mainly individualistically shaped society. A few days ago I watched the BBC Doco "The age of self" and was struck again by how important our work here in Nieklitz and in all the other communities and projects around the world is. Long story short: I wanna come and would like to contribute with some input or workshop. I have a solid background in natural building, especially in building Earthships and could give an input on Earthship technology, the global movement and about social dynamics/personal growth potential in practical building workshops. I also could give an input on the Wir bauen Zukunft project, our approach to develop a project community and what we\'ve learned so far. Another option could be to run a little Case Clinic workshop, a format I\'ve learned during a U-Lab course which trains people in active listening.', u'entity_id': 37670, u'annotation_id': 11713, u'tag_id': 1910, u'entity_type': u'comment'}, {u'quote': u"What I'm getting at here is that OpenCare should also consider establish a serious approach with double scope: avoiding infiltration of quackery and protect us from accusations of quackery.\xa0\n\xa0What I'm asking the community for is to contribute with ideas of how to implement EBM in our approach, as in your clinic?", u'entity_id': 19479, u'annotation_id': 9766, u'tag_id': 1399, u'entity_type': u'comment'}, {u'quote': u'Lets make it clear:\xa0Quality is one thing, safety is another. Quality depends on the maker = participant. Safety is ensured by facilitator and mentors. Safety is a relative issue. Walking is risky \u2013 you may fall, therefore the neurologist may advice stop walking and use a wheelchair instead (a real casestory). As when we do clinical trials,\xa0the participant must be guided through a \u201arisk assessment\u2019', u'entity_id': 33426, u'annotation_id': 12995, u'tag_id': 1400, u'entity_type': u'comment'}, {u'quote': u'Reliability and safety. How can you ensure that the community with its contributions (the sum of all) are good quality and safe?', u'entity_id': 6459, u'annotation_id': 9768, u'tag_id': 1400, u'entity_type': u'post'}, {u'quote': u'However, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be "ok, let\'s ignore this step and bypass it".\nThere are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents\' costs, etc on the side of providers).\nOf course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that\xa0is almost\xa0"ethical": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as\xa0gut feeling here, but I am open to discuss it in depth later)\xa0the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final "accidents" that will always happen (only that which does not work, will not break).\xa0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model "exploitative", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.\nSo, what would be the general ecosystem\' services that would keep this garden grow orderly? I don\'t see this answered (that\'s not an easy one,\xa0indeed)\nResearch, and "citizen science", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.\nFor the sake of our understanding, let me be pedant and allow me to stress that\xa0disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status.\xa0A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a "because".\n\nI would like to not dig too deep in the question about why the current "solutions" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let\'s be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don\'t normally ask themselves questions like "how long will this work continuously?", "what will be the safety mechanism once it turns off, as instance because of battery exhaustion?", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?",...\nLet\'s not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter "being poor means having too much end of the month"... it may steal a smile, but it\'s a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.', u'entity_id': 23523, u'annotation_id': 9767, u'tag_id': 1400, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 9771, u'tag_id': 1401, u'entity_type': u'post'}, {u'quote': u'The Reef and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time.\xa0There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?', u'entity_id': 6850, u'annotation_id': 9770, u'tag_id': 1401, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 9769, u'tag_id': 1401, u'entity_type': u'post'}, {u'quote': u'However, some strategies and support can help to overcome these difficulties: 1) Government support, by the implementation of national policies on Open science. This is our biggest obstacle, not money or other things. 2) International organisations can be used as a vehicle of Open science. Because there is a kind of epistemic and colonial alienation which makes that our leaders trust in International Organization (because of money) and they are very open to discuss with white people. The reality is all things coming from the white people, West and NGO\u2019s are \u2018good\u2019, while they don\u2019t listen to their own people. 3) Due to these realities, most of the geeks engaged in biohacking are successful because they are connected with Western geeks and lab.', u'entity_id': 37182, u'annotation_id': 11784, u'tag_id': 1925, u'entity_type': u'post'}, {u'quote': u"Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection", u'entity_id': 7673, u'annotation_id': 9777, u'tag_id': 1409, u'entity_type': u'comment'}, {u'quote': u"It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.", u'entity_id': 10128, u'annotation_id': 9776, u'tag_id': 1409, u'entity_type': u'comment'}, {u'quote': u'Additionally, any attempt to rationalise the system and squeeze some extra productivity out of it seems to dehumanise people in need of care, who get treated as batches in a manufacturing process.', u'entity_id': 5510, u'annotation_id': 9775, u'tag_id': 1409, u'entity_type': u'post'}, {u'quote': u'money, spent in a certain way to achieve something defined, is more catchy than sustain the normal activities of an organization\xa0and is also easier to avoid that money\xa0are not spent in the right way.\xa0\nSo with ReGent you could apply for example to buy a camper and instruments to go around the city to do biohacking in schools. It should be for activity that is not normally done by the association (this may be different in places like Syria, etc.).', u'entity_id': 23217, u'annotation_id': 9788, u'tag_id': 1411, u'entity_type': u'comment'}, {u'quote': u'The trick is that the 10% that goes to projects will bring users.', u'entity_id': 20627, u'annotation_id': 9787, u'tag_id': 1411, u'entity_type': u'comment'}, {u'quote': u'Yes.. a non-extractive P2P accommodation platform most likely is the best opportunity that we have to pilot a new model of sharing economy that could produce positive externalities at an unprecedented scale.', u'entity_id': 829, u'annotation_id': 9786, u'tag_id': 1411, u'entity_type': u'post'}, {u'quote': u"For the strategy, the only real competitive advantage is, in the end, that % that get subtracted to every transaction.\nThe % needed to merely run a platform is always much lower than the one taken, lots of this money are used for advertising, paying managers, and the majority of it become profit (this is true for platforms that have a solid business model ).\nIt's how this subtle but substantial amount of money is used in an alternative way that could make the difference.\nBasically the money that is redistribute helps the platform to grow and\xa0it lower the\xa0Custumer Acquisition Cost in a platform that don't require a huge amount of users to reach the critical mass.", u'entity_id': 10667, u'annotation_id': 9785, u'tag_id': 1411, u'entity_type': u'comment'}, {u'quote': u'In the UK, we can perhaps benefit in an unexpected way from present trends. There are still large numbers of standard council-controlled schools, but increasing numbers of free schools and "academies". While these are perhaps set up to allow private interests to profit from education (very distasteful), they can also be used to break free of some norms, and maybe experiment with this kind of idea.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commenteducation\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 38977, u'annotation_id': 11731, u'tag_id': 1412, u'entity_type': u'comment'}, {u'quote': u'Counter Culture Labs in Oakland is a science-oriented community hackerspace, with a focus on biohacking. In one project taking place at the lab, members are engineering yeast to express milk proteins from non-animal sources - next generation of vegan cheeses and milk. Others are busy developing an eco-friendly bacterial sunscreen.\nOpen Insulin is one of these projects, and its goal is to make it simpler and less expensive to make insulin, starting by investigating some novel ideas for making insulin in e. coli using fewer, easier steps than in common industrial protocols. If successful, the members hope it can be a step towards making generic production more economical, and might also enable more participation in research related to insulin, or production of the medicine at smaller scale, closer to the patients who need it, further reducing costs and giving access to more patients who lack it.\nCounter Culture Labs was founded by a group of hackers with diverse backgrounds and interests in the period from 2011 to 2012, with some members coming from Sudo Room, another hackerspace in Oakland that I participated in founding. Many were also involved in Occupy Oakland, and wanted to establish a more permanent organization with the same community spirit and values. Other members came from Biocurious, another biohacking space in Sunnyvale, in the southern end of the Bay Area. I became involved both because I shared the desire to build a community-focused institution, and because I have diabetes type 1 myself, which means I live with the frustration of costly and tedious treatment regimens day in and day out, and I know how much the standard of care for diabetes patients lags behind what recent research suggests might be possible. So, for my own sake, and for the sake of the others with the condition, I sought to take whatever steps I could to close the gap between the research and what is available to patients on the market right now.\nAbout a year ago, some long-standing discussions around making a bioreactor to produce insulin, which had inspired a few previous attempts, turned more concrete when Isaac Yonemoto, another independent researcher of medical treatments, made some suggestions to us about interesting possibilities for innovation and improvement in existing protocols. We started organising regular meetings, and out of those we then organized a successful crowdfunding campaign, which then opened up connections to professionals who work on various aspects of the problem, both the science and engineering around insulin, and the questions of access to medicine. Through this it came to our attention that access to insulin lags far behind the need even now, and even in the most developed countries - costs of insulin are prohibitive even to many people in the US - and all in all, roughly 50% of those in the world who require it have no access to insulin at all, according to the 100 Campaign, a group working on improving access to insulin around the world. There is almost no generic insulin on the American market at the moment - the first one appeared on the market about two weeks after we finished our crowdfunding campaign last year, but it is a long acting type, which is only part of the therapy required by people with diabetes type 1 (about 15-20% of diabetics in USA have type 1; the rest have type 2). And for those who use an insulin pump, short acting insulin is necessary.\nThe general problem in the first world is that the incentives and interests of producers and patient communities are not aligned.\nRight now we\u2019re focused on achieving the first scientific milestones, which is to produce proinsulin, the precursor of the active form of insulin, in e. coli, in our small-scale community lab. Our lab runs mostly on donated and salvaged equipment and reagents and might be comparable in its capabilities to a lab in a less-developed area of the world where there is the least access to insulin. If we succeed, it would show the possibility that small-scale producers in remote areas might be able to make insulin to satisfy local demand, in places where centrally-manufactured supplies can\u2019t reach due to lack of infrastructure - where what roads there are, if any, do not let refrigerated trucks pass to ship needed pharmaceuticals in. Once we have a protocol that embraces everything from production to purification to near the level of purity of pharmaceutical grade insulin, we plan to approach established generics manufacturers with a case for the economic feasibility of serving the unserved market for insulin, and to partner with them to do the rest of the work of achieving sufficient purity of the product and scaling the methods to production. As we proceed with our work, the main batch of patents around the various forms of insulin are expiring, which will further help us make the case for a comprehensive portfolio of treatments to potential generics manufacturers.\nProvided all this goes well, we might then pursue another idea, closer to our original hope of a bioreactor that produces insulin, and a kind of \u2018holy grail\u2019 goal in the DIY bio world, which is a desktop biofactory, an analog of desktop 3D printers, but for proteins and biologics, which we might develop to first execute one of our protocols to produce insulin, but which we might also design with more flexibility in mind. This would consist of a bioreactor portion that could grow a culture of e. coli or yeast, and then extract and purify a product from it - very roughly speaking, the union of a fermenter with an FPLC, a piece of equipment that purifies proteins. If that is possible, supply of insulin could be placed very close to the demand of the diabetics around the world in a simple, economical package, and reliance on distribution infrastructure would be minimized. It would also reduce the need to have skilled technicians with years of lab experience to execute these protocols by hand.\nUltimately, I hope that opening up the tools for research to more people can help to bring research on cures to patients, and not just treatments. Let me mention a few of the more promising ideas that have had some success in research settings. One approach is to implant functioning pancreatic cells from a donor and protect them from immune attack by various means - hard to scale if you need a constant supply of donors,but it might be possible to grow cultures of the cells in vitro to address this. Another approach is to get the immune system to cease its attack on pancreatic cells, and promote the regrowth of the body\u2019s own insulin-producing cells, either in the pancreas, or in another tissue via gene therapy - a simpler approach to apply once it is developed. Some of the ideas use very inexpensive supplies such as adjuvants, the materials in vaccines that provoke an immune response - and there has been some success using adjuvants alone, or with carefully chosen additions, to get the bodies of diabetic patients to reduce or cease their autoimmune attacks. Other concepts address the metabolic changes behind type 2 diabetes. Several drugs between the research and commercial worlds of medicine can act directly on the metabolic control mechanisms of the body, changing its pattern of energy use and other aspects of metabolism back from the pathological state of metabolic syndrome and type 2 diabetes to the normal, healthy base state. Some of them are small organic molecules, easier to make than proteins such as insulin, but due in part to reasons of cost and incumbency, are not mainstream treatments yet.\nAt the most general level, what we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions. Right now, we\u2019re a group about half a dozen people working regularly on the project, with a few dozen more people in touch every now and then to help out, and a hundred or two in the extended community, ready to answer a question or call for help. Every week or two, someone new comes to the group, who just learned about the project via the media or our regular meetups, and wants to help. Some are complete beginners and end up taking our introductory classes to biohacking, some already have experience but got tired of the limits of the institutions where they worked, or have relatives with diabetes and want to contribute to progress. Though we\u2019re building up a broader community of participation in research slowly, we hope our efforts can plant many seeds out of which future innovations will grow.\nMeanwhile, we are looking to broaden a circle of people who can advise us, experienced scientists and engineers who can help us troubleshoot issues that inevitably come up when investigating the unknown, but we also hope to inspire other groups to work independently in a broader community of innovation. We would like to set up a network of both institutional and DIY researchers living all around the world who have different approaches and ways of making insulin as well as tackling other diabetes and health related issues. Beyond producing drugs, participants might research questions of access to medicine, investigate what patient communities need the most, look at academic publications to identify the most promising research that is not making it out to serve patients, or help establish the effort to build the desktop biofactory. Part of our goal is to prove it\u2019s possible and worthwhile for people outside institutions to take the initiative on these questions, and inspire others to take the lead in their own efforts and bring about the broader changes we seek.\nDo you have any projects in health, medicine, or biohacking that you\u2019d like to work on, but lack people, knowledge, or resources to make it happen? Are you working on a diabetes-related solution? Or do you feel like a network of care biohackers is something you\u2019d like to get involved with? Leave a comment and let us know.', u'entity_id': 523, u'annotation_id': 9793, u'tag_id': 1412, u'entity_type': u'post'}, {u'quote': u'The goal is first to make normal human insulin\xa0using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the', u'entity_id': 26033, u'annotation_id': 9792, u'tag_id': 1412, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11539, u'annotation_id': 9791, u'tag_id': 1412, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 9790, u'tag_id': 1412, u'entity_type': u'post'}, {u'quote': u"Ce texte est une pastiche qui n'a jamais \xe9t\xe9 publi\xe9 suite au faite que le jour de publication \xe9tait le jour des attentat en France. J'ai rencontr\xe9 Yannick qui m'a propos\xe9 de partager ce texte ici, car comme d'autre id\xe9e la r\xe9appropriation de l'espace commun a comme b\xe9n\xe9fice des gens plus sain d'esprit dans la ville. Voici notre proposition:\xa0\nUne nouvelle Maison du Peuple!\nAujourd\u2019hui est un jour historique pour Bruxelles. Apr\xe8s de longs mois d\u2019incertitude, le conseil communal \xe0 enfin tranch\xe9: le Palais de la Bourse deviendra le lieu commun de tous les bruxellois. Ils ont \xe0 nouveau une Maison du Peuple!\nCe temple architectural est \xe9videmment d\u2019abord un choix symbolique. Apr\xe8s y avoir accept\xe9 la tr\xe8s controvers\xe9e exposition Behind The Numbers glorifiant le n\xe9o-liberalisme, la Ville s\u2019est rendue compte qu\u2019il fallait donner une autre destination \xe0 cet endroit que celle de pure sp\xe9culation commerciale et d'activit\xe9 touristique. En transformant une partie de la Bourse en Maison du Peuple elle redonne une place aux Bruxellois au c\u0153ur du centre historique!\nDonnez la ville aux habitants, et tout le monde s\u2019en portera mieux\nOn ne comptait plus le nombre d\u2019actions contre les plans de la Ville: plates-formes citoyennes, regroupements de commer\xe7ants, actions ludiques diverses... Qui ne se souvient du banc de 30 m d\xe9pos\xe9 au milieu de la Grand place, ou des centaines de gens pique-niquant place de la Bourse, de l'action de revendication des escaliers de la Bourse comme tribune libre d'expression politique lors du KunstenFestivaldesarts? L\u2019espace public \xe9tait devenu un haut lieu de d\xe9bat, mais paradoxalement ne recevait pas d\u2019endroit ad\xe9quat pour le mener (une Agora). La participation ne remuait que du vent, les riverains ne se sentaient pas entendus. La ville \xe9tait taill\xe9e sur mesure pour les eurocrates, les touristes Chinois, avec commerces ouverts le dimanche, tandis que le Bruxellois devait se contenter d\u2019une ville certes prestigieuse, mais sans lieu o\xf9 il fait bon vivre, une ville d'exp\xe9riences individuelles juxtapos\xe9es, atomis\xe9es, sans liens.\nLe Beer Tempel projet\xe9 dans le Palais de la Bourse aura une entr\xe9e par l\u2019arri\xe8re, et c'est tr\xe8s bien ainsi. Mais sans occuper tout l'espace, il comprendra une nouvelle Maison du Peuple, o\xf9 chacun pourrait d\xe9battre de ce qui se passe dans la ville, o\xf9 les initiatives bottom-up pourront cro\xeetre, de nouvelles id\xe9es pour une ville meilleure surgir. Il importe de faire de ce lieu symbolique qu'est la Bourse un espace de libre d\xe9bat, une Agora. Il s'agit de rendre la ville aux habitants pour que tout le monde en profite, pour que l\u2019habitant s\u2019y sente bien. Alors le touriste, le commer\xe7ant et tout les autres s'y sentiront bien aussi.\nLa Ville esp\xe8re avec cette Maison du Peuple calmer les tensions palpables par le biais d\u2019une communication plus ouverte: un endroit de rencontre et d\u2019\xe9coute sera ainsi am\xe9nag\xe9 dans le b\xe2timent. En revitalisant de cette fa\xe7on la Bourse, en lui donnant une \xe9chelle humaine, la Ville aide \xe0 fabriquer le tissu social des prochaines d\xe9cennies. Bien s\xfbr, le touriste y aura sa place, car la Maison du peuple sera ouverte a tous. Mais nous ne voulons pas que la centralit\xe9 habit\xe9e soit confisqu\xe9e par une vitrine \xe0 touristes. A la Maison du Peuple, les touristes pourraient rencontrer des Bruxellois, trouver des bons plans pour une visite de Bruxelles vue par ses habitants, trouver le plaisir culturel de ville plus qu'une consommation gr\xe9gaire.\nUtopie et R\xe9alit\xe9? \nEt maintenant vient la chute: on est encore bien loin de cette possible utopie \xe0 Bruxelles et c\u2019est bien dommage. On dirait que la peur panique du d\xe9sordre social jette la Ville dans les bras de la soci\xe9t\xe9 du spectacle, attractive aux investisseurs, par la privatisation de l\u2019espace public, le non-d\xe9bat constant avec les acteurs locaux, un trafic encore plus monstrueux, et de plus en plus de gens en d\xe9saccord avec chacun mais encore plus avec la politique bruxelloise...\nUne souffle nouveau, un bref moment d\u2019air frais pourrait nous sortir de l\xe0, donc amis Bruxellois, politiciens donnez-nous cette Maison du Peuple \xe0 la Bourse.\xa0\nSinon on la prendra!", u'entity_id': 784, u'annotation_id': 9789, u'tag_id': 1412, u'entity_type': u'post'}, {u'quote': u'I really like how you put it that the "alternative" economies ( sharing, circular....etc ) can just get back in the capitalism umbrella within the fablabs, makerspaces, communities.', u'entity_id': 38834, u'annotation_id': 11845, u'tag_id': 1936, u'entity_type': u'comment'}, {u'quote': u'Network reciprocity, mutuality, shared values;', u'entity_id': 6462, u'annotation_id': 9799, u'tag_id': 1415, u'entity_type': u'post'}, {u'quote': u'As for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!', u'entity_id': 11020, u'annotation_id': 9803, u'tag_id': 1417, u'entity_type': u'comment'}, {u'quote': u'As for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?', u'entity_id': 7567, u'annotation_id': 9802, u'tag_id': 1417, u'entity_type': u'comment'}, {u'quote': u'I need to extend my network now in order to connect with communities and groups that would like to host me. I could be travelling from one place to another this way, knowing there would be support and people to talk to. I need to figure out best ways to sustain myself - travelling for long would cost me my patients, and a source of income. If you\u2019d like to give me a tip, share an idea, help me prepare the tour - leave a comment.', u'entity_id': 740, u'annotation_id': 9801, u'tag_id': 1417, u'entity_type': u'post'}, {u'quote': u'How to spread your message, how to reach people, how to get your creation out there?', u'entity_id': 6439, u'annotation_id': 9808, u'tag_id': 1419, u'entity_type': u'post'}, {u'quote': u"I guess my question would be what plans do you have for encouraging participation in the platform outside of major cities? I can foresee that these are the areas where uptake of new platforms are often slowest, but that they are often areas with high levels of charity support and high levels of poverty. I'm thinking for example of an area like Cornwall in England (high use of holiday lettings and airbnb style accommodation, but also high levels of regional un/under-employment and low levels of Government engagement in service delivery)", u'entity_id': 24694, u'annotation_id': 9807, u'tag_id': 1419, u'entity_type': u'comment'}, {u'quote': u"practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?\n\nThe reason being is that the people who choose to share their homes or cars with others are often already on these other platforms and until they start to move over to new platforms there is no way for I the user to actually access the platform. I.e. I can't order a ride when there is no driver available.", u'entity_id': 14269, u'annotation_id': 9806, u'tag_id': 1419, u'entity_type': u'comment'}, {u'quote': u'So, I and my wife Lisa started "Makers" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that\'s completely self-sustaining. Our logic is that, in these increasingly reactionary times, public money will not be available to help localities, so we\'ll need to make sure that what we do works on a completely commercial basis. This means that job number one is to SELL! Every other objective can only be realised after we understand exactly how to relocalise manufacture SUSTAINABLY.', u'entity_id': 14151, u'annotation_id': 9812, u'tag_id': 2268, u'entity_type': u'comment'}, {u'quote': u"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the \xa0creating a benefit to the community:\nhere's the story:", u'entity_id': 33744, u'annotation_id': 9811, u'tag_id': 2268, u'entity_type': u'post'}, {u'quote': u"Nowaday almost 8 of 10 Malagasy people are living under extreme poverty if \xa0we refer to the UN statistics. In 4 years only, \xa0a new cohort of population ( more than 24 %) was falling in extreme poverty. They search inside garbage and rubbish try to find some used bottle and stuff which still sellable. Statistically. It's about 5.6 million of people,\xa0more than the people on the capital and some suburban areas. In general, about 18 millions of Malagasy have to get 4 000 Ar per day less than ~ 1, 25 $ /1\u20ac according to the International Pauverty Line.", u'entity_id': 20018, u'annotation_id': 9810, u'tag_id': 2268, u'entity_type': u'comment'}, {u'quote': u'Meanwhile, I was making art from trash that I found in skips. Not only was the trash free (yes!) it seemed to me to be the most suitable material with which to make art about urban decline.\n\nThen I started to find computers in the trash. I collected them, with the idea that I would make robot sculptures and other crazy artworks. I was amazed to discover, after some experimentation, that most of the PCs I recovered actually worked! I started to think about why people were throwing these machines away - when the city had a low level of engagement with information technology.', u'entity_id': 1710, u'annotation_id': 9809, u'tag_id': 2268, u'entity_type': u'post'}, {u'quote': u'I would like to talk about medicalization of lifestyles. Some people call for de-medicalization, and want to rebrand anorexia or autism or amputation as a lifestyle. Where are the boundaries of \u201ca medical condition\u201d?\n\n\nFrench guy:', u'entity_id': 38811, u'annotation_id': 11743, u'tag_id': 1421, u'entity_type': u'post'}, {u'quote': u"I really connect with all you've said here and in particular you're sense of urgency and the imperative of radically different approaches to health and its broader determinants. I have often found myself at well intentioned workshops with rooms full of professionals working hard at designing perfect interventions that will deliver the miraculous \u2018product' of health to our communities. I\u2019m intensely frustrated by the waste of human resources and energy when surely it must be obvious that health is not simply the output of professional \u2018interventions\u2019 (even the clinical language makes me recoil). Surely it\u2019s obvious that health is also fundamentally the natural outcome of healthy communities, relationships and systems - including our political and economic systems.", u'entity_id': 13972, u'annotation_id': 9816, u'tag_id': 1421, u'entity_type': u'comment'}, {u'quote': u'Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues? Can we look at Care as something to cultivate rather than to delegate?', u'entity_id': 837, u'annotation_id': 9815, u'tag_id': 1421, u'entity_type': u'post'}, {u'quote': u'What is meant by heath at work ? Do we speak about fitness,\xa0yoga and mindfulness ? If so, it is just an approach to relieve people and allow them to go on in an unsatisfactory environment. If it comes on top of the characteristics I mentioned\xa0hereabove, it\xa0will be the ice on the cake.', u'entity_id': 24331, u'annotation_id': 9814, u'tag_id': 1421, u'entity_type': u'comment'}, {u'quote': u'e work on owning our own definition of wellness, from the physical to the mental.', u'entity_id': 521, u'annotation_id': 9813, u'tag_id': 1421, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 25265, u'annotation_id': 9817, u'tag_id': 1422, u'entity_type': u'comment'}, {u'quote': u'But maybe one still needs to at least make a case before deciding to tolerate attitudes around you that go deeply against your owns. Mea culpa.', u'entity_id': 22652, u'annotation_id': 9784, u'tag_id': 1410, u'entity_type': u'comment'}, {u'quote': u"It gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?", u'entity_id': 19778, u'annotation_id': 9783, u'tag_id': 1410, u'entity_type': u'comment'}, {u'quote': u'This, for me, is a really difficult design challenge.', u'entity_id': 14055, u'annotation_id': 9782, u'tag_id': 1410, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 12132, u'annotation_id': 9781, u'tag_id': 1410, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 9780, u'tag_id': 1410, u'entity_type': u'post'}, {u'quote': u'For me, the test is winning arguments with family and close friends whose opinions are a little far off from mine.\xa0What is your practical experience?', u'entity_id': 9719, u'annotation_id': 9779, u'tag_id': 1410, u'entity_type': u'comment'}, {u'quote': u"Reflexivity and objectivity are very connected in ethnography.\nIt's impressive to see and compare visually the two networks and your comments are so useful for the paper!\nI'm trying to go deeper in how boundaries and tasks between the opencare network and the research are constructed and sometimes solved. By an ecosystemic and emergent approach all this gets high meaning.", u'entity_id': 23783, u'annotation_id': 9818, u'tag_id': 1423, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 39337, u'annotation_id': 11643, u'tag_id': 1424, u'entity_type': u'comment'}, {u'quote': u'residents', u'entity_id': 39328, u'annotation_id': 11624, u'tag_id': 1424, u'entity_type': u'post'}, {u'quote': u'residents', u'entity_id': 39328, u'annotation_id': 11622, u'tag_id': 1424, u'entity_type': u'post'}, {u'quote': u"Creative producer, working in theatre. I write and perform poetry, as well as storytelling and playing games. EdgeRyders and OpenVillage ties in with my work with refugees. I'm a Regional Co-Ordinator for Help Refugees, UK's largest Grassroots charity working with refugees in Europe and ME. My interest is in how communities and groups are approaching grassroots and how community led organisations are looking to deal with refugees and asylum seekers within communities around Europe.\nFor OpenVillage session(s) \u201cfor me useful things would be: connections with on-the-ground refugee organisations working in/around Brussels\u201d", u'entity_id': 6360, u'annotation_id': 9822, u'tag_id': 1424, u'entity_type': u'post'}, {u'quote': u'Currently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.', u'entity_id': 33817, u'annotation_id': 9821, u'tag_id': 1424, u'entity_type': u'comment'}, {u'quote': u'My Husband and I are also heavily involved in another nonprofit organization in Brussels and volunteer at a local football club, with over 300 youth from various backgrounds. We also have a goal of making this youth more inclusive and open - both for children with special needs, but also for refugees, who get refused from other football clubs around the city for example. We will introduce the first refugee children into the club for the coming season, which we are very proud of, as we see this as part of the wider community work we are involved in.', u'entity_id': 716, u'annotation_id': 9820, u'tag_id': 1424, u'entity_type': u'post'}, {u'quote': u'Projects to make the sports clubs more inclusive because they were closed for refugees; also hardly accessible by children with special needs. So with other people they pushed for inclusivity and speaking to the Belgium Football Union, but also preparing a strategy for the next few years.', u'entity_id': 541, u'annotation_id': 9819, u'tag_id': 1424, u'entity_type': u'post'}, {u'quote': u'refugees', u'entity_id': 39338, u'annotation_id': 11646, u'tag_id': 1424, u'entity_type': u'comment'}, {u'quote': u'the Calais \u2018Jungle\u2019', u'entity_id': 39328, u'annotation_id': 11609, u'tag_id': 1424, u'entity_type': u'post'}, {u'quote': u'refugees', u'entity_id': 39333, u'annotation_id': 11611, u'tag_id': 1424, u'entity_type': u'comment'}, {u'quote': u'The issue is complicated and multifaceted, I would immediately give up any attempt at labelling the barriers as "ethical", "protectionism", or anything else... there are components of each of the above and more, and the problem is intractable if reduced.', u'entity_id': 38810, u'annotation_id': 11837, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'I am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.', u'entity_id': 37593, u'annotation_id': 11827, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'In OpenCare we have attempted to address this issue. @lakomaa and @tino_sanandaji have been working on a concept they call "evasive entrepreneurship", which is what happens when entrepreneurial qualities are deployed to circumvent regulation instead of working within its framework. And @amelia has noticed interesting  links between ethno codes such as legality and existing systems failure (but also safety) in her analysis (interactive visualization here).', u'entity_id': 37488, u'annotation_id': 11805, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11780, u'tag_id': 1425, u'entity_type': u'post'}, {u'quote': u'your data are still there and still open. You can still go ahead and undercut them.\nThat said, you can take a "free" as opposed to "open" approach, and use nc or nc-sa licenses. This means people can reuse your data, but are prohibited from doing anything commercial with it; additionally, with sa (share alike) any new entity that incorporates your data inherits their license, so all "children" dataset stay noncommercial forever. The Creative Commons website has a handy wizard for choosing your preferrred license.\xa0These days, noncommercial licenses are\xa0not\xa0considered open licenses according to the Open Definition. With Creative Commons licenses, additional usage rights can always be negotiated with the rights holder. So, you can put out data with a nc license; if Novartis thinks they are so valuable and want to use them to develop a drug, they have to come to you and ask for a different license. At that point you decide what to do. Of course, it is difficult to monitor that they do not just syphon the data up and do whatever they want anyway, but hopefully the regulation is tight enough that they will consider not worth the risk of being caught out.', u'entity_id': 12671, u'annotation_id': 9843, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'There is a lot of perceived risk in funding non-institutional projects, especially at the European level where so many stakeholders are involved. How to we allay those fears? What about ethics committees, scientific advisory boards, financial controlling...?', u'entity_id': 6427, u'annotation_id': 9842, u'tag_id': 1425, u'entity_type': u'post'}, {u'quote': u"If I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and\xa0 3world countries? Personally I'm not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based\xa0 research has to spend years and millions? Isn't it like giving guns to children? @dfko Why can't you just get proper NIH funding?", u'entity_id': 23568, u'annotation_id': 9841, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'Now this leads to two different considerations:\n1 Based on my design experience, it is extremely hard to convince workers in the standard medical field (hospital,\xa0primary care physicians, etc...)\xa0to adopt a new kind of CRM software for multiple reasons: regulations issues due to privacy and national laws, obligations in using a specific software, affection to a well known software in contrast to the commitment in learning a new one,(even when the new one has better user experience...\xa0)', u'entity_id': 33771, u'annotation_id': 9840, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'community and a\xa0non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of "regulation by design" as well as "safety by design" we first considered regulation and safety and build our development according to the main guidelines.\xa0\nThen i haven\'t heard about the group\xa0about exploring\xa0open alternatives in (e)health and healthcare\xa0support. Could tell me more ?\nFinally, thank you for both links, they are very interesting', u'entity_id': 11010, u'annotation_id': 9839, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u"@Olivier hi, welcome on board. Are you part of the group coming together later this month to explore open alternatives in (e)health and healthcare\xa0support?\nI'm adding here two recent\xa0opensource projects\xa0that we know of for medical treatment,\xa0and which\xa0you might enjoy connecting with.\n\nOpen source game apps as solutions to respiratory\xa0diseases!\nEfforts to open up software eg pacemakers for heart conditions\xa0to enable increased security by the logic of: more access -> more resilience and better quality. It would be very appreciated\xa0if you could jump in and tell us\xa0how you cover the regulatory issues so that\xa0your product can\xa0actually be used. For example, what part of your code will you certify and does the fact that it's opensource make it more reliable or not for its future uses?", u'entity_id': 7382, u'annotation_id': 9838, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u"*\xa0What you say about \u201abypassing\u2019 is actually the reason for hacking -\xa0for opencare. Once you certify your product is \u201afrozen\u2019. Yes it\u2019s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https://edgeryders.eu/en/fes-for-foot-drop). You can't meet individual requirements because youll lose certification.", u'entity_id': 33426, u'annotation_id': 9837, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'As an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I\u2019ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970\u2019ies anymore. In the name of assuring \u2018quality\u2019, \u2018safety\u2019 etc, \xa0we need to manufacture, CE mark, register as a medical device and so on!. \xa0To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price. \xa0Why should people, already challenged economically by loss of health, spend 5-10 k\u20ac \xa0for a device that could be made much cheaper?', u'entity_id': 516, u'annotation_id': 9836, u'tag_id': 1425, u'entity_type': u'post'}, {u'quote': u"What I have seen from my exposure to a small institution is caring staff who are doing a good job and have good, close relationships with their service users. However, they are often distracted or overwhelmed by\xa0an ever-changing regulatory framework, as happens in other sectors such as teaching. Ultimately I would like to see the funding from lcoal councils topped up by central government, and this be accepted as the only way to provide decent care. More flexibility from the regulatory body would also help - allowing for more differences in care provision, especially in smaller, more intimate homes; as I've mentioned this does seem to be unlikely given the current standardised, bureaucratic, regulation and\xa0inspection by\xa0checklist...", u'entity_id': 27817, u'annotation_id': 9835, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'There is good reason for the regulatory framework, but the overhead for both\xa0parties (regulatory body and care institution) has become increasingly high and ever-changing, as with many top-down bureaucratic systems. (In the UK the body has gone through some changes after criticism regarding its efficacy , but it was formed from good intentions to stop care providers simply taking the money and "housing" the elderly or needy. There have been issues with maltreatment, theft, poor care, etc., just as there has in other social care areas, so some standards need to be set and monitoring carried out by a third party.', u'entity_id': 27817, u'annotation_id': 9834, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'Definitely suggest a test case and liaising with local CGCs / councils... The sector is very heavily regulated by CQC (Care Quality Commission), and the mandatory requirements are quite intense in terms of staff training & numbers, facilities, type of care offered, activities, care planning, health & safety (including prevention of infection - limiting doing "funky" things with premises, unless one works really hard), etc.', u'entity_id': 26047, u'annotation_id': 9833, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months.\n@Rune\nI think we have some miscommunication here. I\'m not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has \'similar\' issues to the issues of open source.\nOn your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by \xa0P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don\'t believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper "Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis.\nThere are many more things we might discuss about regulation, such as the FDA\'s limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM\nBy making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I\'m not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I\'m happy to provide more reading and evidence, when time permits.', u'entity_id': 26028, u'annotation_id': 9832, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'I can\'t really answer your question "Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals?" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms.\nAs for " Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer\'s names? Not sure, but couldn\'t you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product?\nOf course I agree that such probing questions need to be asked, and you can\'t expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome.\nHowever, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term.\nLastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto\'s comment.', u'entity_id': 21955, u'annotation_id': 9831, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\xa0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references", u'entity_id': 21205, u'annotation_id': 9830, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'Well done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs / traditions).\xa0\nIt may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages.\xa0I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety,\xa0hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds ("we have to comply with all these expensive regulations, whereas these guys just go gray economy").\xa0\nIn passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue\xa0capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.\xa0\nSo, I guess a first step towards\xa0A Taste of Home\xa0is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?', u'entity_id': 6539, u'annotation_id': 9829, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'If your innovation is specialized, small in scale, or incremental (hence fitting well in the ecosystem where the\xa0incumbents are thriving), maybe it\'s easier to figure out how to obtain certifications and licenses, than how to establish safety nets and sandboxes to work outside of them (formally,\xa0but within the purpose of defending your "users").', u'entity_id': 15136, u'annotation_id': 9828, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u"It's not impossible to find good solutions, and regulators are often discussing of innovation in this field of regulation, but there are no shortcuts...", u'entity_id': 8137, u'annotation_id': 9827, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'No, other\xa0examples of care services that rewire themselves so as to (1) establish themselves as "owned" by the community and (2) bypass stifling regulation.', u'entity_id': 22025, u'annotation_id': 9826, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u"Like other people in the space we are calling open care (small letters: the concept, not the project), you, @steelweaver, are rewiring care services as community-driven. Your way to do so is the donation model. The Helliniko crowd's is the refuse to incorporate.\xa0What different ways have in common is this: they build trust and style these services as community-driven, and the communities as the owners. They also sidestep regulation, perceived as stifling. @teirdes\xa0and @markomanka are full of stories on why this perception is at least partially correct. @Lakomaa could probably offer additional insights.", u'entity_id': 19025, u'annotation_id': 9825, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'I am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (or at least it was desirable before networked reputation economies became a possibility - who knows what alternative models might be possible now?).', u'entity_id': 18202, u'annotation_id': 9824, u'tag_id': 1425, u'entity_type': u'comment'}, {u'quote': u'mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of "regulation by design" as well as "safety by design" we first considered regulation and safety and build our development according to the main guidelines.\xa0\nThen i haven\'t heard about the group\xa0about exploring\xa0open alternatives in (e)health and healthcare\xa0support. Could tell me more ?\nFinally, thank you for both links, they are very interesting.', u'entity_id': 11010, u'annotation_id': 9845, u'tag_id': 1426, u'entity_type': u'comment'}, {u'quote': u'Oh, thanks for the reply.\xa0"regulation by design".. this is new to me and I hardly get what it means, so when you have some time do tell.', u'entity_id': 12316, u'annotation_id': 9844, u'tag_id': 1426, u'entity_type': u'comment'}, {u'quote': u'In relation to what i bring on to the open village festival, i intend to lay out the underlying reasons why we have a lot of youths engaged in drug abuse in africa and its social-economical effects of developing-world countries.\ni would to demonistrate the importance strong communities towards combating the drug menace and eventually creating awereness with views eradication of the drug menace.\nradicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA.\nwe hope to grow a strong network out of the presentation at the festival so as to broaden our scope of understanding and welcome some experts in social-counseling who may helps in rehabilitating these youth into leading productive lives within the communiting.\napproach of presentation\n\nthe presentation may include brief videos and statistical data to show the scale of damage.\ngroup discussions and presentation(which may require representatives of each team presenting their finding to attendees)\nslides hence i may require :\n\n\nprojector\nwhite board\nmakers\n\nNOTE : the presentation may take 30-45 minutes\nat the festival i hope to learn more on collaboration and experiences in europe which may help us advance our urge to transform our local communities to provition of global solution to our local challenges.', u'entity_id': 6407, u'annotation_id': 9848, u'tag_id': 1427, u'entity_type': u'post'}, {u'quote': u'Sara: \u201cThere is much work to do including working with actual users and receiving their feedback. With the goal of making it open source, fully customizable and adaptable, a community of user is required. We are solving the problem of monitoring the progress of rehabilitation therapy and the people directly impacted must be included.\u201d', u'entity_id': 861, u'annotation_id': 9847, u'tag_id': 1427, u'entity_type': u'post'}, {u'quote': u'#reHub #glove is a tool used to monitor hands movements. Collected data can be applied to a various range of fields.\xa0\nreHub is an interface of interaction man-machine. It can be used in various areas for example the evaluation of dexterity, sport, music & gaming.\nOur beneficiaries are all those people who needs to have an experience feedback concerning the hand movements.\nreHub glove is a tool designed for proprioceptive rehabilitation, to recover movement fluidity after an injury: provided by the physiotherapist, it allows the patient to record and report exercises data such as hand position, finger flexion and fingertips pressure. Recorded data are displayed through a software that reproduces a 3D hand, its movements and detected values. Through the software a physiotherapist is able to evaluate the therapeutic process and possibly change it. Thanks to reHub exercises can be done in physiotherapist presence or at a distance.\nReHub acquires informations about fingers movements from flex and pressure sensors. It uses a 6DOF sensor to define the position of the hand in space.\nreHub glove is the result of a meeting between electronics enthusiasts, a physical therapist and a hand rehabilitation patient to find a way to solve the problem of monitoring the progress during rehabilitation therapy. During this meeting we found out there are no digital devices to monitor the hand rehabilitation and we decided to develop one.\xa0\nTo define our project we didn\u2019t started from a theoretical concept. We started to make the prototype and to test it.\xa0\nThe development of reHub working prototype has been at the heart of our design process.\nAs described on www.rehub.pro, the definition of the prototype is subdivided into 4 time frames of research and development. The first steps of the team have moved in electronics and design.\nAfter testing the very first glove we decided to create an integrated system with a self-produced/maker pcb. Our design has always been oriented, and always will be, to integrate all electronics on the top of the glove. Another aspect of our prototype is that the glove itself must be comfortable for the patient. At a later time, once we knew that the glove was able to transmit data to the computer, we focused on the development of a software allowing patients and physiotherapists to evaluate the glove\u2019s collected data through a graphical interface and cartesian charts.\nWe are looking for our final user(s), who will try our product and help us develop different options:\n\nSport\nGaming\nEducational\nMedical \xa0\n\nWe want to built a community and start a business strategy.\nWe will publish tutorials, kits and software to make your glove.\nEverything to improve the glove solution.\nWe want to develop 4 different kits to sell:\n\nwith single sensors\xa0\nonly the electronics\nglove tailored\ncomplete of all\n components\n\nWebsites & Social\nwww.rehub.pro\nwww.facebook.com/rehubglove', u'entity_id': 33751, u'annotation_id': 9846, u'tag_id': 1427, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 9849, u'tag_id': 1428, u'entity_type': u'post'}, {u'quote': u'Thanks for the headsup @Alberto . Insightful words from @zazie .\nI have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?', u'entity_id': 28735, u'annotation_id': 9851, u'tag_id': 1429, u'entity_type': u'comment'}, {u'quote': u"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !?\nOnce I searched medline (a database of scientific publications) \xa0to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' .\nCan it really be that there is a enormous hole in healthcare research here?\nCould it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?", u'entity_id': 24439, u'annotation_id': 9855, u'tag_id': 1431, u'entity_type': u'comment'}, {u'quote': u"Thank you for your comment. You are right\xa0by saying that there are many ideas on healthy food and it's very difficult to find evidence for recommended daily intake of various vitamines. Your suggestion to an OpenCare challenge to gather all data on diets etc is indeed also interesting. At this moment for us this scope would be too wide. We want to focus on the group of cancer patients, while we know that besides the battle of their illness they also struggle to gain the right information. As we mentioned in our reply to Noemi's response, we realise the challenge that it's extremely important to ensure a reliable and relevant source of information for this particular group.", u'entity_id': 25187, u'annotation_id': 9854, u'tag_id': 1431, u'entity_type': u'comment'}, {u'quote': u'We realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!', u'entity_id': 17838, u'annotation_id': 9853, u'tag_id': 1431, u'entity_type': u'comment'}, {u'quote': u'We might be stuck into a situation where we are basing our thinking on false information. (Examples follow).\n\n\n\nalbertorey:', u'entity_id': 38811, u'annotation_id': 11744, u'tag_id': 1431, u'entity_type': u'post'}, {u'quote': u'The poor celebrate double in our holidays because of a race for\xa0goodness, because the concept of "Eid"\xa0in the perception of Islam linked to "Zakat"\xa0which is basically the process of cleansing the money by giving the poor his legitimate right of the money which is 2,5 percent of annual profits in secret.\xa0If there is no secrecy Allah does not accept it .\nAnd many annual grants to the poor some of it linked to time, and some linked to personal events like "Akika"\xa0which is slaughtering two\xa0rams\xa0and distributing them\xa0to the poor when the child is born.', u'entity_id': 797, u'annotation_id': 9863, u'tag_id': 1432, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 22093, u'annotation_id': 9860, u'tag_id': 1432, u'entity_type': u'comment'}, {u'quote': u"that abortions are needed, but catholic brainwashing has been so effective, that they're trapped between the moral and the pragmatic views on abortion. Now what seems to prove this is that women are not interested in lobbying for their right to abortion - they somehow agree to comply with the rules by having them underground and accepting the stigma, rather than fighting\xa0for their rights. Imagine even if the lowest estimate of 80.000 women having illegal abortions a year is right, and 10 percent of them would be up to fight with the system on that, we'd have a pretty great leverage to change the law by now. But we don't. have that. Well, at least until now - but this remains to be seen because we also have a conservative revival going on and if the church steps in, you never know who'd stay on top of things. I'd rather not expect us going any more liberal than we're at the moment.", u'entity_id': 16930, u'annotation_id': 9859, u'tag_id': 1432, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 21867, u'annotation_id': 9858, u'tag_id': 1432, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19788, u'annotation_id': 9857, u'tag_id': 1432, u'entity_type': u'comment'}, {u'quote': u'Where you can create solutions without being in the same place', u'entity_id': 541, u'annotation_id': 12999, u'tag_id': 2177, u'entity_type': u'post'}, {u'quote': u'intense physical experience: smelling the laser in the morning will push you humans in flesh and blood (AFK) can use different kind of communications channels (they can also make faces without using emoticons)\n \n\npeople around us can act as serendipity triggers (I.E. \u201cDid you know that you can do this ..\u201d)\n \n\nhaving a lot of materials and tools at hand can foster your ingenuity \xa0\n \n\niteration is key: discard a yesterday idea and try the today, new one\n \n\nyou\u2019re not alone: working in your office is great, but having people around you is awesome!\n \n\ntacit knowledge: learning from others makers (designers, artists, tinkerers...) working around you is an hidden but huge diffused competence and skills repository\n \n\nexplore different points of view about your project: There\u2019s the s*** you know, the s*** you know you don\u2019t know, and the s*** you don\u2019t know you don\u2019t know (right?).\n \n\nonline + offline = GREAT THINGS!', u'entity_id': 6206, u'annotation_id': 9873, u'tag_id': 2177, u'entity_type': u'post'}, {u'quote': u"Hello, @Alberto ! I think I may have not been clear in that while my school takes classes through the online platform we do live together during the school year. Though you do raise an interesting point of how to facilitate a similar sense of community through online communities. Have been a memeber of a few I think a big mistake a lot of groups try and do is replicate in person activites, like a bunch of people just hanging out through webcam. And to me that will always fall short of the live in person dynamic. I think one answer is to organizng physical met ups based off of promitiy of people, which works to an extent.\n\nBut for me the best online communities I've been in have used the fact the memebers are so spread out to there advantage. I think a good example of this is Under 30 Changemakers, which hosts discussions\xa0and training through google hangouts. Instead of having broad web-chats they pre-choose discussion topics based off of community interests or world events and invite their memebers to bring in their perspective. That way people come in already invested in the topic and feel more connected to the community by interacting with members who share their passions. \xa0Also, another activity that seems to go well it when people sign up to be matched with another random member for a skype session. The excitment of not knowing who you'll met but that you have this one community incommon is pretty enaging.", u'entity_id': 17278, u'annotation_id': 9872, u'tag_id': 2177, u'entity_type': u'comment'}, {u'quote': u"Welcome, @Shajara ! This school of yours\xa0sounds really advanced. One thing I don't understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?", u'entity_id': 14631, u'annotation_id': 9871, u'tag_id': 2177, u'entity_type': u'comment'}, {u'quote': u'I\xa0feel the\xa0need for strange networks of care:\xa0unusual, compelling networks that don\u2019t attempt to fix anyone but make healing and self-understanding an adventure and help individuals back into the simple joys of communion and creativity. To\xa0explore\xa0group dynamics and coherence in\xa0recent projects I\u2019ve been involved in, I\'ve worked with beans http://www.rootbeans.com/, with dreams (following the method of my mentor Apela Colorado) http://oneiricarchives.tumblr.com/\xa0and with storytelling http://www.thehaguecenter.org/pathways-project-2/. \xa0Back up in Liverpool we\'re improvising on Stafford Beer\'s work on group dynamics in public meetings. Whether it\u2019s VR group therapy where you experience your own body and other people in highly unusual ways or group Skype rituals for reconciliation the whole notion of care networks is wide open for innovation and renewal.\xa0As a guiding design point I think the only answer to questions like how can ritual time be held online or how can digital networks provide the intensity of feedback of live interaction is bold creativity. If you have examples of\xa0creative online\xa0systems to faciliate group communication and support\xa0that go beyond a\xa0message board or online forum and become something more vital and "live" please share them.\xa0 I\u2019ll be at 33C3 if there\u2019s people from the Edgeryders community who want to meet around the\xa0theme of hacking\xa0strange networks of care. There\u2019s also an option to organise a session: https://events.ccc.de/congress/2016/wiki/Static:Self-organized_Sessions', u'entity_id': 553, u'annotation_id': 9870, u'tag_id': 2177, u'entity_type': u'post'}, {u'quote': u'Another thing that could make face to face meetings different is that you can smell the person and the environment. Also a LOT of our nervous system is connected to the stomach/digestive tract (the face and brain came way later!) so I would not be surprised if there is more purpose to business/conference dinners than to knock out the prefrontal cortex a little (althought that can also help).', u'entity_id': 30502, u'annotation_id': 9869, u'tag_id': 2177, u'entity_type': u'comment'}, {u'quote': u"On face vs screen, etc. I think you are right that certain methods work better (or just more comfortably?) with some people (on some topics). You'll get different discussions and different outcomes. I think face to face helps my mirror neurons fire up fully. I often feel I can only really fully develop many aspects of a thought in a discussion. On the other hand I also like to listen to a recorded discussion afterwards and focus my thought much more on certain aspects without being afraid I have to answer some question or lose track of a discussion. I can be fully in observer mode and my thinking is much more like if I am editing someone else's text and want examine and fix every little bit of imprecision.", u'entity_id': 30502, u'annotation_id': 9868, u'tag_id': 2177, u'entity_type': u'comment'}, {u'quote': u"fully agree with that sentiment. face-to-face produces something tangibly different but equally as powerful as shared 'head space' online", u'entity_id': 30483, u'annotation_id': 9867, u'tag_id': 2177, u'entity_type': u'comment'}, {u'quote': u'I would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.', u'entity_id': 30441, u'annotation_id': 9866, u'tag_id': 2177, u'entity_type': u'comment'}, {u'quote': u"Finally we had one person that helped think out of the box in a really disruptive way. He was a Syrian refugee that had to postpone his medical studies/Ph.D.\xa0 To flee the country and gave us a lot of material to think about. He saw us as 'boxpeople', living in a bubble and putting others in bubbles. Elderly, homeless people, psychological ill are all given a space outside society. They maybe didn't have the most efficient healthcare system, but he explained it was much more humane. It made us think a lot about how we see care in the west. He was also the person that pointed out the problem of trust we create in the west.", u'entity_id': 541, u'annotation_id': 9876, u'tag_id': 1436, u'entity_type': u'post'}, {u'quote': u"You are \xa0a designer \u2013 you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some\xa0job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you'll find it!", u'entity_id': 15984, u'annotation_id': 9875, u'tag_id': 1436, u'entity_type': u'comment'}, {u'quote': u'When discussing integration of people into a group, the separation you make in the beginning affects the integration project...You say there is an external person who should adapt to the community itself, instead of thinking about creating something new from scratch out of the welcoming community and new individials. Especially when you talk about care...you always do the labelling that there is someone who needs help, and I am one to provide help. Maybe getting rid of these labels is important.', u'entity_id': 494, u'annotation_id': 9874, u'tag_id': 1436, u'entity_type': u'post'}, {u'quote': u'This was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical)\xa0well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on\xa0mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.', u'entity_id': 11003, u'annotation_id': 9879, u'tag_id': 1437, u'entity_type': u'comment'}, {u'quote': u"Thank you! I think the main thing we are trying to do is make this topic more approachable. More\xa0than humor it's perhaps about\xa0the casual language and the interactive methods like the simulators and surveys. Of course it is still a serious topic and the options for professional help\xa0should be presented in a serious manner. We don't want to make fun of the shittiness itself, but rather criticize\xa0the social standards concerning emotional wellbeing,\xa0in a somewhat\xa0satirical / cynical way.\xa0As far as using irony or humor to embrace the shittiness, I think that's very personal. Those comics that we mentioned for example often deal with these issues in a funny way and receive many comments saying that it's helpful. But surely there is also people who deal with it differently.", u'entity_id': 11930, u'annotation_id': 9878, u'tag_id': 1437, u'entity_type': u'comment'}, {u'quote': u"OUR GOAL\nWe want\xa0to challenge the current attitude towards psychological care. Our project tries to de-stigmatize psychological pain and make the sensitive, 'taboo' issue of mental health more present and approachable to the public. We believe that udnerstanding and empathy is vital to provide good care for people that are suffering from emotional distress. We want to make it clear\xa0that feeling shitty is nothing to be ashamed of, but actually a very common thing. Also, we want the impact of these feelings to be understandable, so that more people can offer informed, helpful responses. When this happens, the threshold of reaching out is lowered, which in return allows problems to be addressed before they develop into serious mental conditions.", u'entity_id': 511, u'annotation_id': 9877, u'tag_id': 1437, u'entity_type': u'post'}, {u'quote': u'You could host a RC and perhaps keep some of the pieces for parts and training. Of course you can also encourage people to donate some semi-working things or decent enough tools (no one should work with shit tools!)', u'entity_id': 23333, u'annotation_id': 9880, u'tag_id': 1438, u'entity_type': u'comment'}, {u'quote': u'Replicability across countries: there is a lack of culture of open science and a knowledge gap in biology.', u'entity_id': 38856, u'annotation_id': 11878, u'tag_id': 1941, u'entity_type': u'post'}, {u'quote': u'@Francesco_Maria_ZAVA directed my attention to this very interessting glove\n\n http://www.neofect.com/en/\n\n@Moushira. Do you think the Maestro be advanced to be similar, but opensource and easyly replicable?', u'entity_id': 20131, u'annotation_id': 13000, u'tag_id': 2178, u'entity_type': u'comment'}, {u'quote': u'Would love to know if your model has the intention to put itself forth as a form that could be replicable, maybe it alreay\xa0does?', u'entity_id': 21004, u'annotation_id': 9881, u'tag_id': 2178, u'entity_type': u'comment'}, {u'quote': u'Based on the above, we had to find mechanisms to ensure us to life in the light of repression, but we are lucky, all we had to do is follow a system of solidarity that exists already in our values and upbringing.\xa0One of the basics of this system, the most simple rule of it, you find in the words of prophet Mohammad: "he does not enter the paradise, he who whoever sleeps full of, while his neighbor is hungry".', u'entity_id': 797, u'annotation_id': 9882, u'tag_id': 1440, u'entity_type': u'post'}, {u'quote': u'I think, i could easily work with finr artists to talk about reproductive health and other issues of rpime concern to young people.\nThank you', u'entity_id': 11273, u'annotation_id': 9884, u'tag_id': 1441, u'entity_type': u'comment'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 9883, u'tag_id': 1441, u'entity_type': u'post'}, {u'quote': u'I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made \xa0exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.\xa0\nI will love to work out something with you. Lets connect. get in touch at : (+237) 670708533\n:Looking forward to read from you soon.', u'entity_id': 27830, u'annotation_id': 9887, u'tag_id': 1441, u'entity_type': u'comment'}, {u'quote': u"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices \xa0and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing \xa0plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that \xa0expose girls and women to violence \xa0and \xa0HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com\nI will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.", u'entity_id': 24949, u'annotation_id': 9886, u'tag_id': 1441, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 24411, u'annotation_id': 9885, u'tag_id': 1441, u'entity_type': u'comment'}, {u'quote': u"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the \xa0creating a benefit to the community:\nhere's the story:\nHow Bangladeshi inventors are making eco-friendly air conditioners from plastic bottles", u'entity_id': 33744, u'annotation_id': 9888, u'tag_id': 1442, u'entity_type': u'post'}, {u'quote': u"this is a pretty big thing.\nIf you do skype with @WinniePoncelet I'd love to be a fly on the wall and see if I can contribute in some way.\nDo you know the question function of research gate? Insulin comes up with 385 researchers who follow the topic and 300 questions discussed. I often get good and detailed responses on things that you usually have a hard time finding in papers. Check here: https://www.researchgate.net/topic/insulin", u'entity_id': 19886, u'annotation_id': 9891, u'tag_id': 1443, u'entity_type': u'comment'}, {u'quote': u'In my experience with alternative research\xa0models, and especially when interacting with classically trained researchers, it does not occur to them that there\xa0are possible correlations between the research process and the value of the research outcomes. They are\xa0locked in how they have been doing things for years, naturally.', u'entity_id': 14733, u'annotation_id': 9890, u'tag_id': 1443, u'entity_type': u'comment'}, {u'quote': u'What are the consequences of all this activity? More diversity in research. More space for participation. With a bit of luck, more and higher quality scientific output.', u'entity_id': 6175, u'annotation_id': 9889, u'tag_id': 1443, u'entity_type': u'post'}, {u'quote': u'Do you know the question function of research gate? Insulin comes up with 385 researchers who follow the topic and 300 questions discussed. I often get good and detailed responses on things that you usually have a hard time finding in papers. Check here: https://www.researchgate.net/topic/insulin', u'entity_id': 19886, u'annotation_id': 9892, u'tag_id': 1444, u'entity_type': u'comment'}, {u'quote': u"How can communities become more visible and members interact more easily?\nHow do you make the actions of the community visible to the individuals?\nHow do you make individuals' actions more visible to the community?\nHow can we help individuals be independent from official caring services?\nHow do we invite more people to be part of the process and disseminate the documentation?\nHow can we find the right balance between keeping the effectiveness of the box with still being able to go out of the box/\nWhat is the metaphor of what we are trying to do? (Stefanos) helps understand complicated things without\xa0\nHow do you build connectivity into each initiative or do you want connectivity only between initiative? If we all want to coordinate, what amount of time/ effort/ resources can we each put into learning to coordinate?\nHow could we open the debate about the strength of intergenerational care.", u'entity_id': 541, u'annotation_id': 13009, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u"ow come patients associations don't lobby for provision of assisting technology outside the formalised hospital care? Isn't this the kind of thing that they would be best at, being on the organised patient and consumer side?", u'entity_id': 9562, u'annotation_id': 13008, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'\u2192 Are there universal stories?\u2192 But is it personalized better?', u'entity_id': 5405, u'annotation_id': 13005, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How many people need care and are not getting it?', u'entity_id': 10261, u'annotation_id': 13004, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'How long do they have to wait? satisfaction with the care they receive?', u'entity_id': 10261, u'annotation_id': 13003, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'How do people get to the health care when they need it? distance? cost?', u'entity_id': 10261, u'annotation_id': 13002, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'How the health care is funded: (is it governments paying with taxes? Charities? The communities themselves dealing with the problems, without outside help?)', u'entity_id': 10261, u'annotation_id': 13001, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 9958, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 9957, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'what it would be like for patients to work side by side with researchers and makers.', u'entity_id': 10548, u'annotation_id': 9956, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 9599, u'annotation_id': 9955, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u"definitely a plus, the questions remains and it's for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available?", u'entity_id': 18617, u'annotation_id': 9954, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 9953, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11456, u'annotation_id': 9952, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'What if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?', u'entity_id': 8632, u'annotation_id': 9951, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u', if as you say didn\u2019t know each other and had no common identity or belonging, how did you find each other and make the\xa0decision together?', u'entity_id': 21004, u'annotation_id': 9950, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 9949, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'The question is: is this impulse towards care reliable enough that we can factor it into project design? Are we looking at a sort of "If we build it, they will come" of community care initiatives?', u'entity_id': 24862, u'annotation_id': 9948, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Why do you feel responsible? Humans seem to be naturally building mutual help communities. Why? What are we missing?', u'entity_id': 21551, u'annotation_id': 9947, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Do you have similar experiences working with refugees in other parts of Europe?\nDo you have any useful experience that might help the volunteers at the camp?\nDo you have any ideas for how the Calais refugee situation could be re-structured after the evictions?\nAre there any other parts of my experience that you would like to learn more about?', u'entity_id': 536, u'annotation_id': 9946, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 9945, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'what can we as designers do?', u'entity_id': 651, u'annotation_id': 9944, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'So how do we define this word? How does the culture we live in put it into action? How is it valued, honored? Who should we care for, what should we take care of and most importantly: what is so dear to us that we want to take care of it? Are we being taken care of enough to give something back?', u'entity_id': 650, u'annotation_id': 9943, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'What would it take for this to coalesce into something serious?\nHow far along is it already?\xa0(Is it further than we/others assume, due to its illegibility?)\nWhere are the other examples that would build the case?\nWhat are the dangers?\xa0(For example, could the Unmonastery inadvertently become\xa0the workhouse\xa0of the 21st century?)', u'entity_id': 493, u'annotation_id': 9942, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Are we sure that throwing money onto more of the same will result in better outcomes?', u'entity_id': 5234, u'annotation_id': 9941, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How to build/rethink provision of public services so that they can accommodate changes in the number of people to serve?', u'entity_id': 5234, u'annotation_id': 9940, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How to get better at covering necessities of both refugees and citizens/ residents on very limited resources?', u'entity_id': 5234, u'annotation_id': 9939, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc?', u'entity_id': 5234, u'annotation_id': 9938, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'So how do you set up an environment that allows value creation and its distribution but feels like a network and is build on openness, transparency, decentralized processes?', u'entity_id': 19801, u'annotation_id': 9937, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u"Identify and document our assumptions\n\n \n What are our assumptions/hypotheses about how we gratify our clients and or sponsors, who they are, how we will acquire and monetize them?\n  \n \n What are our assumptions/hypotheses about how we serve the needs of our constituency, who they are, as well as how we engage them into becoming more active participants in (and beneficiaries of) our initiatives?\n  \n\n\n\nTalk to prospective customers to validate (or invalidate) our assumptions\n\n \n What problems do they face? \xa0How do they solve them? \xa0What matters to them? \xa0What is a must-have for them?\n  \n\n\n\nIdentify the risk factors in the opportunity\n\n \n Are we facing significant technology risks? \xa0Or more of market risk? \xa0How can we test and validate these (starting with the most risky)? \xa0What market testable milestones can we build that would result in sufficient evidence to induce us to pivot or move forward? A proof of concept? A letter of intent? \xa0A prototype?\n  \n\n\n\nCreate and Test a Minimum Viable Offer\n\n \n landing page click-through that prove there\u2019s some amount of interest in an experience, product or service;\n  \n \n a time commitment for an in-person meeting to view a demo that shows the customer or funder's problem being resolved;\n  \n \n a resource commitment for a pilot program to test how the experience, product or service or product fits into a particular environment.\n  \n\n\n\nOnce we have users using our MVO we listen for & tune into the Must-have signal\n\n \n We listen very carefully to find our must-have signal and articulate it.\n  \n \n We Double-down and strip away the unnecessary> focus on building an experience, service or product that is cherished and supported by everyone who uses it.", u'entity_id': 4195, u'annotation_id': 9936, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'So what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?', u'entity_id': 23982, u'annotation_id': 10013, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 10012, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 10011, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'What kind of structures and processes are essential building blocks or make up the \u2019hardware\u2019?\nWhat kind internal capacities and approaches make up the \u2018software\u2019 that keep a healthy organisation, healthy community or healthy societies humming with human flourishing?', u'entity_id': 6304, u'annotation_id': 10009, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?', u'entity_id': 26676, u'annotation_id': 10008, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'How can you get people to make symbiotic connections with each other by combining their intrest? How can you get people out of their comfortzones by increasing them? Can you make society act more social by making their their help more recognized? Are there new ways to make joyless but neccessary work more enjoyable? Nudging: should we manipulate people in a good way? Do we have to? Aren\xb4t we doing it all the time anyway? Is there a way to defeat hypocritisy in some areas of social life?', u'entity_id': 670, u'annotation_id': 10007, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Can we look at Care as a form of maintenance instead of as an emergency call for chronic issues?', u'entity_id': 837, u'annotation_id': 10006, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'"what is opencare? What does fall under this category?"', u'entity_id': 574, u'annotation_id': 10005, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u"So how do you build it if you live in societies where people's material needs are mostly satisfied?", u'entity_id': 33793, u'annotation_id': 10004, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 10003, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 10002, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 10001, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 10000, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u"Create new realities and find deeper love within and for each other? Can we create and hold space? Can we set up a world that's a reflection of the love and creative potential? Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that's natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn't serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic?", u'entity_id': 846, u'annotation_id': 9999, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How can we create the most amazing world by being all of ourselves? How can we explore more of our loving and creative potential as well as create a world that reflects this inner beauty and love?', u'entity_id': 846, u'annotation_id': 9998, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'\u201c\u2018Trust is an enabler to use the resources.\xa0How can that be created inside an eclectic group like this?\u2019', u'entity_id': 788, u'annotation_id': 9997, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'I am also curious about the connection between burnout and governance structures. If these are designed well, could they not act to distribute the work (and the stress) more evenly?', u'entity_id': 23537, u'annotation_id': 9996, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'I find it\xa0is recurring when the open tech/science ideas meet\xa0traditional ideas that the discussion is seldom held around the question: how can the different approaches\xa0learn from each other, in order to implement a better solution?', u'entity_id': 27802, u'annotation_id': 9995, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'What can i bring to another organization, that also better myself as a person and is easily realizable?', u'entity_id': 541, u'annotation_id': 9994, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Can healthcare systems work like Wikipedia, StackOverflow or other massively coordinated systems with very limited control and overhead?', u'entity_id': 541, u'annotation_id': 9993, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'1) How can we evolve from street park to neighborhood parking?\n2)\xa0How can we turn grey streets to more lively/colorful streets?\n3)\xa0If we create spaces on street level where people can meet each other and come together in a peaceful way, will this strengthen social cohesion in the neighborhood?', u'entity_id': 33746, u'annotation_id': 9992, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Yet teams often still fail. Where lies the problem? Are we not taking the insight far enough?', u'entity_id': 8124, u'annotation_id': 9991, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'How do\xa0you deal\xa0with emotional issues? In what situations do you share\xa0your thoughts with others? How does this make you feel? What might prevent you from seeking support?', u'entity_id': 677, u'annotation_id': 9990, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'where do you see the interface between culture, community and care?', u'entity_id': 6885, u'annotation_id': 9989, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'"how long will this work continuously?", "what will be the safety mechanism once it turns off, as instance because of battery exhaustion?", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?",...', u'entity_id': 23523, u'annotation_id': 9988, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Could we leave people with a physical handicap to become a maker, create their own assistive technology?\nWould it be possible for, for example, researchers to help people living with a disability to hack a dropped foot correcting device like connecting an Arduino with an extension board?\nWill doctors provide indications of how to find the assistive technology, which might solve your health issue?\nThat would mean that people should take responsibility for their own rehabilitation devices. They would have full ownership. Clearly they must be guided by healthcare professionals and experts without conflict of interests to ensure that everything is done ethically, safe and sound. How?\nMaybe if we reunite people living with physical challenges with researchers they would both benefit and research becomes action and functionally useful to the society?\nWhat do you think?', u'entity_id': 516, u'annotation_id': 9987, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Can we improve life conditions, and how? A fundamental question is: do we meet the \u2018clients\u2019 needs?', u'entity_id': 516, u'annotation_id': 9986, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u"It's interesting then to wonder what still needs to happen for a large scale shift. And who will lead it: citizens, government, private sector, ...?", u'entity_id': 30319, u'annotation_id': 9985, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u's this reflective of our focus on youth and the "invisibility" of the elderly, our fear of aging and death nowadays,\xa0marketing, the cult of the self and independence, or somesuch?', u'entity_id': 29077, u'annotation_id': 9984, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'I have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?', u'entity_id': 28735, u'annotation_id': 9983, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'We are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time.', u'entity_id': 678, u'annotation_id': 9982, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 683, u'annotation_id': 9981, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'What if we could support the already existing creativity by opening a space for tools and materials? encouraging them with their ideas and hacks?', u'entity_id': 681, u'annotation_id': 9980, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Could it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?', u'entity_id': 24439, u'annotation_id': 9979, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Have you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you?\nWhenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways?\nHow can we use social media more conscientiously so as to create spaces for mutual aftercare?\xa0What can we do for each other in digital spaces whenever a global grieving event occurs?', u'entity_id': 548, u'annotation_id': 9978, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How and how much the openness of a design and production process influences the openness of service delivery.', u'entity_id': 5749, u'annotation_id': 9893, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Collective intelligence: how can a community function as a knowledge engine?', u'entity_id': 5377, u'annotation_id': 9895, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Domain expertise on care: how can communities interface with the academic debate\xa0on what constitutes care and how it should be done?', u'entity_id': 5377, u'annotation_id': 9896, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Design: how can we bring state-of-the-art design for sustainability and service design\xa0practices into designing care provision?', u'entity_id': 5377, u'annotation_id': 9897, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Open hardware: how can rapid prototyping and open hardware platforms be used in\xa0the participatory design of care services?', u'entity_id': 5377, u'annotation_id': 9898, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Public policy design and evaluation: how can community-driven care services be\xa0integrated in the highly sensitive, highly regulated landscape of European care provision?', u'entity_id': 5377, u'annotation_id': 9899, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'From this understanding - how do we understand the instruments and tools of the collective, of citizens - what do they look like in relation to health and social care? Equally, how do we understand the instruments and tools of the state (such as policy) - how can these be designed to enable the collective response that is the basis of welfare in traditional societies?', u'entity_id': 23982, u'annotation_id': 10014, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Perhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects?', u'entity_id': 7889, u'annotation_id': 10015, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'ow do we get people to operate well in high stress enviroments?\nreduce there expectations of situations to allow them to see what is happening? how do we get people to learn rapidly as this is the only way to stay on top of quickly changing situations? how can more of the knowledge and expertise that has been aquired be passed on more effectively? \xa0in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?', u'entity_id': 860, u'annotation_id': 10016, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How we live with one another and how we make sense of the interactions when factoring in power relations, newer arrivals, meshing of spaces or other elements that constantly challenge the basis of our relationships?', u'entity_id': 867, u'annotation_id': 10017, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How to spread your message, how to reach people, how to get your creation out there?\nWhat organisational structures and practices\xa0models do we use to make sure contributors are getting the most out of their contributions\xa0participation and their contributions have the most impact?\nHow do we\xa0fund our projects? How do we sustain our project financially?\nWhat is a good way to influence policy?\nHow do we ensure compliance with legal frameworks and patents?\nHow do we ensure reliability and safety for users?\nHow do you professionalize without compromising values?\nHow to work with institutions?\nHow to distribute value in a fair way?', u'entity_id': 6439, u'annotation_id': 10018, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'https://edgeryders.eu/en/response-questions\nIt is a Drupal view that renders all the questions from all the stories\xa0submitted by community members in opencare. If you remember, when submitting a story one needs to fill in the Story editor with some information about what is is, who do you want to reach etc?\xa0\nI can do Tuesday 6:30 PM this week.', u'entity_id': 15402, u'annotation_id': 10019, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'how do we repilcate skilling up?\nhow do we deal with elite panic? ie large organisations in dissarray due to poor leadership.\nhow do we get people to thrive in high stress enviroments?', u'entity_id': 6470, u'annotation_id': 10020, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'how can gaps be filled more effectively?\nhow can training\xa0be provided that meets unkown needs?\xa0\nhow do we prevent difficulty from becoming dispair?', u'entity_id': 6470, u'annotation_id': 10021, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'What if we could come up with a system that combines the access to modern science and technology of state- and private sector-provided care to the low overhead and human touch of community-provided care', u'entity_id': 5510, u'annotation_id': 9901, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'The Diabetes implant: What was an illegal hack in 2012, is now a solution that is available for others. How did this happen? What kind of legal hoops did they have to jump through?', u'entity_id': 5463, u'annotation_id': 9902, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How many doctors/clinics/hospitals there are in the area.', u'entity_id': 10261, u'annotation_id': 9903, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u"Does our client (client?) care about the situation in America, or because it's EU money do they not care about far away places, with maybe completely different situations / cultures?", u'entity_id': 10261, u'annotation_id': 9904, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u"For the UK, an important question i would like answered is: 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?", u'entity_id': 10261, u'annotation_id': 9905, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location?', u'entity_id': 10261, u'annotation_id': 9906, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'When does storytelling create empathy? What are the conditions? That it create a connexion to the other person\u2019s circumstances.', u'entity_id': 5405, u'annotation_id': 9911, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Common experiences \u2013 if I have been through an experience, am I more equipped to support the other facing that experience?', u'entity_id': 5405, u'annotation_id': 9912, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'\u2192 If I was a combatant, I can share my story first then be better equipped to support the combatant I work with.\xa0\n\n\n\u2192 Create a link through storytelling fro better care?', u'entity_id': 5405, u'annotation_id': 9913, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Showcase the offer and manage expectations. But how?', u'entity_id': 5405, u'annotation_id': 9914, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'What stories?\n\n\n\n Does the narrative approach scale as well as we think it does?\n\n\n\n\u2192 Can you actually bring it global? Yes if you recognize the identity and scaling issue?', u'entity_id': 5405, u'annotation_id': 9915, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'What does this mean for narratives of care?', u'entity_id': 5405, u'annotation_id': 9916, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'What is the question that this network representation can answer? The sociology of the network.', u'entity_id': 5403, u'annotation_id': 9917, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Ezio: co-design process. These tools could be part of the solution. We are now a network and there could then be a network of nurses doctors etc. This discussion can in a similar way happen among care-givers? Costantino: the conversation will not be the result of this group, but of a larger group. But the network of care-givers might be not committed, skilled, or motivated to use an online tool.', u'entity_id': 5403, u'annotation_id': 9918, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How do you know your network is going in the right direction? What is a \u201cdirection\u201d in this context? Is everyone following the same path? Do people group into sub-communities? What are the focus of these (sub) communities?', u'entity_id': 5260, u'annotation_id': 9919, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Are there individuals who act as "hubs"? Why? Can we use hubs to improve the process, for example asking them to spread important knowledge?', u'entity_id': 5260, u'annotation_id': 9920, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Concept-to-concept conversation networks tell us how the different concepts connect\xa0to each other. Are there surprises? Do apparently unrelated concepts tend to come up in the same exchanges? Anomalies might mean something interesting is going on', u'entity_id': 5260, u'annotation_id': 9921, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u"What views works best? It'll be useful to build it as a mockup if we do not already have it -- use color pens, paper, clips, cardboard and build it into a mock-up!\nFor what tasks? Do we need to move things around? Pile them up to trigger comparison of things on-the-fly? Lasso an item to trigger some computation? -- use post-it notes, cut and paste pieces of paper, draw arrows to turn tasks into real actions (on a screen!).\nUsing what ingredient (data)? What should we feed the system with to accomplish these analytical tasks? -- write them down, cut & paste, associate them with specific tasks, embed them into views.", u'entity_id': 5260, u'annotation_id': 9922, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How do you create sustainability? \xa0Donation based/grant based/fee based?\n \n\nHow do you interact with existing structures?\n \n\nHow do you work with or around licensures/certifications to provide safe care?', u'entity_id': 521, u'annotation_id': 9959, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Which brings me to a question: wellness, exercise, nutrition\xa0are the low hanging fruit, the place where you are likely to get most results per unit of effort. Why not stick to them? Why struggle with licenses and regulatory hurdles?', u'entity_id': 20474, u'annotation_id': 9960, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 9961, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'Because they are so closely intertwined, it is often difficult to separate between the professional and the personal. How does this affect the way we deal with issues of mental and emotional wellbeing in this context?', u'entity_id': 680, u'annotation_id': 9963, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Are these emotional strains simply an occupational hazard that we as creatives have to accept?', u'entity_id': 680, u'annotation_id': 9964, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'How do these factors influence people in creative fields in reaching out when in distress? At what point does these different pressures stop aiding creativity and start impeding it?', u'entity_id': 680, u'annotation_id': 9965, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u"shouldn't this be precisely what art school is about? Providing the freedom to engage deeply with such practices, to experience the emotional fallout of an intense creative life before a job or a commercial project is hanging in the balance?", u'entity_id': 29955, u'annotation_id': 9966, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'if this is so generalized, what support systems are out there for artists then? do artistic collectives or platforms have a contribution to make here or rather more diverse social environments?', u'entity_id': 30885, u'annotation_id': 9967, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'One question that crosses my mind: how much of this is penetrating within the non-creative spheres as side-effect of the creative turn, the requirement for creativity, the curated self, etc.?', u'entity_id': 32270, u'annotation_id': 9968, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u"with so many diverse community efforts,\xa0haven't there been any events\xa0where active\xa0people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?", u'entity_id': 14969, u'annotation_id': 9969, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u"What was wrong and why didn't anyone know how to react or to organize?\nWhy weren't we ready? Why didn't governments, NGO\u2019s and independent groups cooperate? And when they did, what happened?\nWhat socks are most appropriate for their long trek?\nHow can we fit all the necessary items in a backpack?\nAnd what about the weight?\nHow can we gather the right clothing from the world?\nHave you ever try to sort thousands of clothes?\nIs it true that women from Syria didn\u2019t want to wear rain boots?\nAnd what about UNHCR\u2019s wool blanket?\nAnd all those tons of food wrappers, wet wipes, bottles...?", u'entity_id': 550, u'annotation_id': 9970, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Is there any kind of system in the world that could cope with that amount of people?', u'entity_id': 550, u'annotation_id': 9971, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'\u201cCould humanitarianism be evolved as a profession or it could be a new way of living?\u201d', u'entity_id': 550, u'annotation_id': 9972, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'One question: by "solidarity" do you mean a formal association or something more loosely arranged through a kind of self-identification?', u'entity_id': 26053, u'annotation_id': 9973, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'* How to get around ensurance of responsibility etc..\n* Can you reproduce a patent for non profit or private use? How do you work with or around licensures/certifications to provide safe care? (from :https://edgeryders.eu/en/woodbine-health-autonomy-center)\n*\xa0How do you interact with existing structures?', u'entity_id': 5913, u'annotation_id': 9974, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14850, u'annotation_id': 9975, u'tag_id': 2179, u'entity_type': u'comment'}, {u'quote': u'How do you find ways to make a living as a young generation which government does not care for ?', u'entity_id': 746, u'annotation_id': 9976, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites?', u'entity_id': 548, u'annotation_id': 9977, u'tag_id': 2179, u'entity_type': u'post'}, {u'quote': u'reaching out for ways to cater to our needs. It seems like it percolates through the crack of society, colonizing immediately any area that "the economy" retreats from. This could be why there are so many great stories from Greece coming through; Helliniko and\xa0@OrangeHouse , @Aravella_Salonikidou and her strange "not some social space", @MAZI , @Tree_of_Life , @To-Steki , @Jenny_Gkiougki , @Noesi ... Greece has suffered more than most countries, and yet there is so much resilience.', u'entity_id': 21551, u'annotation_id': 13010, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'I\'d like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma\'s through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings "Circles of openness".', u'entity_id': 6401, u'annotation_id': 10056, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'in the long term how do we cultivate high levels of mental resilence so we can face the future well? how does mass empowerment break down into actionable steps in the crisis to come?', u'entity_id': 860, u'annotation_id': 10055, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'I\u2019m a designer, nurse, yoga teacher, food grower and performer, currently studying Business Enterprise and Community Development with Equal Ireland. I\u2019m lucky to have had many learning opportunities, and the freedom to let that knowledge merge.\nI volunteer at a community/school garden (Soil Chro\xed \xcdosa) with Transition Galway and was a writer/editor and designer for our \u201cA Vision for Galway 2030\u201d document.\nI\u2019m also Resilience Coordinator with An \xc1it Eile (The Other Place), a cultural organisation in Galway, with an amazing network of collaborators. In 2015 I was invited to open meetings by An \xc1it Eile (A\xc1E), mapping potential groups who could potentially fill a community led cultural hub in Galway. Some of the groups I\u2019m active with matched perfectly, so they were an easy fit. I developed the idea as part of my college work, with input from A\xc1E.\nNext was \u201cPilgrim\u201d, again collaborating with A\xc1E, entered for the European Capital of Culture 2020 bidbook for Galway. Working around 3 thematics, Monastery (inspired by unMonastery), Meitheal (Irish term for a work party) and Pilgrimage.\nIn October we done this...\n\n\n\n\nKeeping momentum, we tested unMonastery/Monastery in early December, 2017. 4 days at Cregg Castle, PreMonastery; a Rural Reconnaissance. A range of skilled individuals involved with a range community groups and initiatives, and collaboration with @Nadia (EdgeRyders LBG). We\u2019ve just submitted our report to Galway 2020. Many outcomes during and after the event including the adding of stories to Opencare.\nWe\u2019re hoping to roll out Pilgrim: Year One this year. The provisional plan feels epic. Joining the med-hack revolution and design/build small spaces looks like a promising direction. Sharpening existing knowledge/skills, then application and outcomes.\nfreeflowcreativity.com', u'entity_id': 812, u'annotation_id': 10054, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.\xa0\nLucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks \u2013 an additional advantage to your idea.', u'entity_id': 20068, u'annotation_id': 10053, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10052, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u"I like\xa0your description of your\xa0community garden\xa0becoming\xa0a 'laboratory for resilient forms of urban development'. If we're truly open to learning - the most surprising spaces can become laboratories for new methods and models.\xa0And I totally get what you say about how unhelpful the pressure to present to the external world the successes is, in sharing and learning from the excessive challenges that community work can present.", u'entity_id': 23537, u'annotation_id': 10051, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river\u2019s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu\u2019s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.', u'entity_id': 576, u'annotation_id': 10050, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'I\u2019ve been asked what projects I think can really make a difference: Projects that work on the concept of resilience,\xa0avoid that people identify themselves with their own pain.\nWe saw a lot of people that 5 or 6 months after their arrival start to fade, to turn off. During the first months you hope that your rights became effective, job, home.. But nothing happens. Your life becomes full of complaints.\nA very interesting school that is part of the community is for example, Asnada. It\u2019s a Montessori/Experimental\xa0school. The idea is to teach in a different way. Helping people to use this new language not as a \u201cstranger\u201d language. Usually you start to have 2 languages: the native one that is the language of feelings and relationships and a second language that is the language of bureaucracy. The idea is to teach a language that helps you to construct your new identity, \u201ccreate your new life here in a new language\u201d.\nSo the lessons became a workshop where we, all together, construct the language, with different ways, methods (arts, music, plays..) and also being a community.\nSo in my opinion it\u2019s really important to be able to find new ways to take care, creating effective spaces of meeting, of real exchange.\nWork on resilience, opening workshops where people can create something (for ex. FabLabs, Makerspaces..) using open technologies (like Raspberry Pi) could become new ways to take care of people in really big troubles, with strong vulnerabilities and help them to start again.\nMaybe Opencare, Edgeryders community could be the right place where to start!!\nWhat do you think?', u'entity_id': 515, u'annotation_id': 10049, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 526, u'annotation_id': 10047, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u"the neighbouring houses.\nStamina comes from following a common sense approach to resilience. Food is a base need, and the process of growing it benefits health, community, physical environment and financially it helps a little to get veg every now and again for our efforts. I can't imagine not growing some food every year. It feels like the most rational thing I do with my time.", u'entity_id': 20731, u'annotation_id': 10046, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'Eventually\xa0I developed some resilience towards these\xa0inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don\u2019t have on having a shrink try to figure out what is the matter with me\u2026and how to fix it.', u'entity_id': 18288, u'annotation_id': 10045, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'I was lonely for most of my life, I don\'t have\xa0anything too complicated with my family and I had a few friends while growing up but I\'d never let anyone in. I had never exposed myself or talked about my feelings. As time went by I got better and better at it. A very good listener my friends called me. Even today I still find myself shifting the subject of the conversation whenever it gets to me.\nI tried to act like I was Ok, or maybe I was just not aware. I had an eating disorder and a sleeping disorder and it got pretty bad at some points. Almost every night I\'d stay in bed awake waiting\xa0for my family members to go to sleep, then I\'d storm the fridge eating like 4 hungry people, go back to bed feel horrible and couldn\'t fall asleep.\nI lived like that for many years, sometimes it was better sometimes worst. I can\'t tell what drove into seeking help but around the age of 22 I told my mother I think I need help. She was very happy that it came from me rather than her as she was thinking the same.\nI started\xa0going to therapy. It took me nearly 4 months to gain the trust I needed to open my heart but with time my therapist and I became closer and through our conversations I slowly began to understand what my life was missing: love, family and friends. Yeah I\'ve had my loving family, a few friends and a number of short romances but none of it real because I didn\'t allow it to be, I\'ve never been me.\n4 years later I\'m studying industrial design and doing Erasmus in UdK Berlin.\n\nAs part of our human centered design course "Hacking Utopia", my partner Pauline and I are focusing on the challenge how we might boost each other\'s mental and spiritual resilience. After posting here story to Edgeryders, our team member Nele was recommended in a comment to watch Brene Browns Ted talk, The Power of Vulnerability. We have found it so inspiring, it was exactly what we were talking about.\nAt the moment we are trying not to have any idea of how our product will look like so that we can have a neutral research and hopefully a surprising result, but we are looking in the direction of a design intervention that will encourage people to be vulnerable and share their feelings with their loved ones.\n\nBoth Pauline and I went through therapy and we both agree that what was missing in our lives was the ability to share our difficulties with our close ones. We discovered that both of us had to use objects in order to speak to our therapists. I had to put a cushion over my knees and Pauline was always keeping her hands busy by playing with hair bands or ripping pieces of paper, avoiding eye contact.\nWe were wondering whether you might have made any similar interesting experiences/observations to share with. Do you feel comfortable sharing your feeling with others? Can you get people to open up to you?\nWe are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time.\nAlso, if you have any other Ideas, thoughts, articles, projects, products or whatever you think can inspire us further please let us know.\nThank you so much for reading so far,\nTeam JUS.\nP.s. - We really liked this short video and wish we could make a sofa that feels as good as the hug in the picture above.', u'entity_id': 678, u'annotation_id': 10044, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'From 2012\xa0onwards, I got fascinated by the concept of public space and how to bring it back in the center of everyday life in the city. After reading a call by philosopher Philippe Van Parijs about the urge to design new ways to interact in public space because of the limits of private space in the city, I got involved in Pic Nic The Streets and Canal Park BXL that both asked the government to urgently work on citizen based public space to better the living conditions of each citizen. Both won the political battle, but the result wasn\u2019t really what we were hoping for. Pic Nic The Streets led to a carfree city center, but so poorly planned that a strong movement of anti carfree people could rise and are now threatening to stop \xa0further reorganisation of the city center. Looking at the plans for the big park, we are scared that gentrification will become an even bigger issue now in the zone around Canal Park. We were hoping for an inclusive design knowing that a lot of poor people are living in that neighbourhood. Now we are continuing to work as an observer with a cargo bike installation called Canal d\u2019Accroche (part of the project V\xe9lo M2, explained here) in that neighbourhood, hoping to bring them some resilience.', u'entity_id': 520, u'annotation_id': 10043, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'Saying that, the best strategy I have found up to now is to try to be rested, eat well, exercise, pursue some hobby and be happy. In exactly that order. As you build up energy the number of fucks given dramatically decreases and you are psychologically more resiliant. Sometimes very resiliant.', u'entity_id': 23909, u'annotation_id': 10042, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'Against this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does \u201ereal\u201c self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?', u'entity_id': 666, u'annotation_id': 10041, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u"What a story, @Timothy_Daly. Thank you for sharing it with us, and welcome to Edgeryders and OpenCare, our research project.\xa0\nThis really makes you wonder, reminded me of the Rosenhan\xa0experiment.\nThe detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.\nDo you have ideas on how to better the situation for someone like Dave? is a temp squat really doing anything good for him, or what would be a way to recovery that is dignifying? If you're involved in or know of systematic community efforts, do tell. \xa0\nIf you're more into the research and observation: we're struggling to put together a\xa0brief for stories about mental resilience, a set of questions that are\xa0solution-oriented and not intimidate people to share things that after all are very private in an online environment. Help if this is something of interest to you?", u'entity_id': 7227, u'annotation_id': 10040, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u"When we arrived to move into the house, we seemed like an unlikely crew. There were three lads living there already - Kieron, Dave and Billy. Kieron was the leader. He had a drill. Billy was very pale and very thin - kind of morose somehow while at the same time desperately optimistic. He looked like he hadn't seen a vitamin in months. Dave on the other hand, was just mad. At this point, quite obviously, even certifiably, mad. Just a week or so before he had actually escaped from the psychiatric hospital over the road, bringing to mind a scene from 'One Flew Over The Cuckoos Nest'. And over the course of our time together, Dave told me a few stories about that place, that enlightened paragon of metal health provision which had held him body and soul for all of nine months. He told me how he preferred prison, because at least in prison you got a release date. He told me about the electric shock therapy, which left your mind totally scrambled for two or three days, then left you feeling more or less ok for two or three days but with no memory, after which they did it all over again. He told me about being chained to four big guys who were there to 'look after him', even when he went to the toilet. About how if he didn't go along with something that they wanted him to do, sooner or later he'd get held down and recieve a knock-out shot delivered to his buttock, which resulted in unconsciousness and a noticeable reduction in his ability to stand up for his rights. Essentially, he didn't have any rights. He was mad. They could do whatever they wanted to him. The detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority. They say what doesn't kill you makes you stronger, but I'm not so sure I believe them. Dave's approach was to break out of the place and find himself a squat to live in with a couple of mates and several total strangers, one of whom had been recognised by Kieron from a free party, when they bumped into each other down at the job centre. Its amazing what gets hatched down at the job centre, and I'm not talking about anyone finding a job. But anyway, when we turned up at the squat, Dave was living on the sofa in the lounge in a haze of ashtray cigarettes and cheap cider, eyeing the curtains nervously and never far away from a large knife. You got the feeling he was pretty keen never to go back inside that place if there was anything he had to say about it. And he wasn't leaving the house, or even that room much at this time. Absconders from mental health institutions tend to be automatically served with arrest warrants by the local magistrates, and I don't suppose that was helping his mental health any either. Dave seemed to be doing pretty well as far as I could see, considering everything that he'd gone through so far in his life. He told me his Dad was always drunk and often violent. He said his mother had been killed, shot by a farmer standing in front of her dog trying to protect him while out for a walk. That was when he left home. He'd had a job as the look-out for a gang of thieves that robbed industrial units at the age of nine. A little later he'd gone to live with a family of Irish travellers who'd trained him to be a bareknuckle boxer, a discipline at which he was apparently quite talented. Some time after that he'd bought a house, back when they gave mortgages to people with no job, no credit rating and no intention whatsoever to make even a single repayment. That episode lasted a few months, during which time he acquired an addiction to crack and heroin, or 'brown n white' as it was known on the estate. That was when the mental health issues really kicked in. I could sometimes see the different personalities fighting for control inside Dave's head. So much suffering just couldn't be contained inside one self-image, so the ever resourceful ego just created a couple of others to help take the strain. I think it was fair to say that Dave was feeling the pressure. And of course, he couldn't go to get any medication, because he knew the Doctor would just arrange to have him arrested as soon as he arrived at his appointment. \n\xa0\nOn the one hand, Kieron and Billy were quite happy to have Dave and his knives living on the sofa. After all, this was a squat, and you never know what might go down. Sometimes you have to defend a place, and while Kieron liked his drill, that was about the limit of his handiness. And if anything serious went off you'd most likely find Billy in a cupboard. So Dave had his uses. And anyway, they were mates. But in this condition, he wasn't exactly easy company. So naturally, Billy and Kieron started to pal up a little. They shared a floor in the house with a kitchen in it, they went outside from time to time. They liked to get stoned together, and have a laugh. But this was unsettling to Dave somehow. He'd been mates with Billy for years, since the time he bought the house. He had no family left, no real friends after all the alcoholism, the drugs, the crime, and the madness. Billy was about all he had. And now he was feeling him drifting away. It all came to a head one full moon. It 'd been building for a while. You could feel it all through the house, under the neon strip lights in the corridors. Tension. The more Dave got wound up, the more Kieron and Billy retreated into their little flat. Sometimes you could hear him shouting incoherently in the lounge on his own. It wasn't very reassuring. But on this particular night, we found him shouting slightly more coherently, and it wasn't at himself. It was directed at Kieron. Dave was pacing the lounge, muttering to himself, wild-eyed. Then suddenly, something snapped. He grabbed his largest knife from under the cushions of the sofa and stormed out in the direction of the stairs. Larissa, sharp as ever, phoned Kieron fast and told him to lock his door. She was just in time. \n\xa0\n'Yer fuckin big gay bastard! Open t'door.' \n\xa0\n'Fuck off Dave' said Kieron, with his foot set hard against the door to keep his demented friend from getting in. \n\xa0\nIt wasn't looking good. Dave was stabbing the door repeatedly with his enormous blade, while Kieron, who fortunately for him liked to eat a hearty meal, was leaning against it with all his weight. \n\xa0\n'Open t'door or I'll fookin kill yer both'\n\xa0\nIf I open t'door, that's when you'll fookin kill us both, was more what it looked like. \n\xa0\nThe rest of us were gathering downstairs in the lounge. We'd known these people a week, and this was the only place we had to live. We were not ecstatic about the situation. And besides, we were worried, as much for Dave as for Kieron and Billy. We really liked Dave. He was a lovely lad, underneath all the addictive behaviour, the paranoia and the threat of imminent violence. I'd had a good connection with him from the start. We both had Irish ancestry. We shared a dark sense of humour. Dave's kind of funny was to make unbelievably hot curries, knowing that Billy didn't like them, but that he had no money and that there was no other food in the house. And then to watch Billy eating them, as his face got redder and redder, and his expressions grew ever more absurd. That was like Dave's perfect joke. So anyway, I headed up the stairs, with Dom close behind. The stairwell was pulsating, neon, harsh light. Nowhere to hide. Kieron's door was closed now, with the giant knife stuck in it, wobbling, and Dave half-shouting half-sobbing, desperately scared of losing his friend, his mind, his freedom. I wondered about his family history, and how much comprehension he had of his own emotional reality. It can't have been easy for him. And I thought about my own safety. But however erratic he'd been acting, I didn't feel any kind of malicious intent would be directed towards me.\n\xa0\n'Dave, Dave. Dave man, it's me.'\n\xa0\nDave was in his own world, and it was breaking down.\n\xa0\n'Dave, what's up man? Why don't you put the knife down?'\n\xa0\nHe kicked the door a couple of times, just desperate now, more than dangerous. My heart broke for him.\n\xa0\n'Dave, you're bleeding mate! Look. Let me see that hand.'\n\xa0\nDave looked at his palm, which had been cut by the knife as he had rammed it repeatedly into the door. It wasn't serious, but it was badly enough to make a fair mess. The sight of his own blood seemed to bring him back to himself. All the fight had gone out of him now. You could see he was ready to be taken care of.\n\xa0\n'You should get that seen to Dave. You want me to come with you mate, we'll go down to the A&E dept at the bottom of the road?'\n\xa0\nHe let me lead him away, still staring at his bloody palm, and I placed my arm around his shoulders as Dom discretely removed the knife from the door and hid it out of sight. The crisis it seemed, was over. At least for now. But still, we had an evidently pretty broken human being on our hands, and what the hell were we going to do about that?", u'entity_id': 502, u'annotation_id': 10039, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 801, u'annotation_id': 10038, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u"Under the Architectures theme it would be useful to explore - personal resilience, effective\xa0ways to pass on skills (this is also something other theme conversations have picked up on - see here). Logistics/coordination may come in to the considerations about the role of citizen compared to role of the state and appropriate instruments such as policy. I'm not yet clear on this. Perhaps others have some useful perspectives?\xa0Your questions would also bring in the dimension of emergency -\xa0what does urgency bring\xa0to the lines of enquiry the Architectures theme have considered so far?", u'entity_id': 14386, u'annotation_id': 10058, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, "restoring the zombie economy", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?\xa0\nEven though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what\'s happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.', u'entity_id': 704, u'annotation_id': 10048, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'By then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments.', u'entity_id': 804, u'annotation_id': 10037, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'In Syria we have an \u2018islamic solidarity\u2019 in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven\u2019t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship. \xa0We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.', u'entity_id': 790, u'annotation_id': 10036, u'tag_id': 1446, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14850, u'annotation_id': 10035, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27805, u'annotation_id': 10034, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u'contributing towards fixing the kinds of community resilience challenges we are attempting to tackle...', u'entity_id': 8632, u'annotation_id': 10033, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u"It seems to me that the experiences you describe are all community-based. It's always people, it's always peer-to-peer. People give each other acceptance,\xa0encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make \u2013 if only because the people in\xa0these experiences have\xa0two\xa0ways to get acceptance and validation, one through material achievement and one through the community.", u'entity_id': 6719, u'annotation_id': 10032, u'tag_id': 1446, u'entity_type': u'comment'}, {u'quote': u"NO I think we realy tried to be MORE HUMANS...at least that's what I felt in this event... people conscious of their potential and influences wanting to connect their powers to create utopians projects, connecting knowledge and technologies, building islands of resistance...yes join the resistance, against bigotery, rascism, all sort of fascism (facebook?), neo liberalism, lets build more communities online, offline, dive with us and come play/party, your bizness plan is your community, from now on that's all that matter", u'entity_id': 38808, u'annotation_id': 11761, u'tag_id': 1448, u'entity_type': u'post'}, {u'quote': u'Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being. \xa0PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support.', u'entity_id': 826, u'annotation_id': 10061, u'tag_id': 1448, u'entity_type': u'post'}, {u'quote': u"Hi @MarieScheurer ! \xa0\nI find that the proposition (for Germans) can make a difference: when you are asked to come and commit to do something and be responsible for it\xa0is different than when you are asked to join a social gathering, or simply have fun.\xa0\nA proposition I loved was the one by Tonguesten (here on Edgeryders) - who are mixing language with culture, and frame it as being part of a community of language learners.\nAny idea of why they are reluctant and don't want to feel obligated?", u'entity_id': 7835, u'annotation_id': 10060, u'tag_id': 1448, u'entity_type': u'comment'}, {u'quote': u"THE OPTIONS EXPRESSED IN THIS PAGE ARE ENGAGING ONLY THE AUTHOR. The Malagasy people seem to have lost the desire to resist standing up to defend their rights, even though they are being trampled on a daily basis. According to statistics, 92% of Malagasy lived below the poverty threshold but no one rose up. When social pressure is too much, the point of rupture is not far, and the accumulation of frustration and deprivation often results in bloody explosions. However, this can be avoided. Just put yourself to nonviolent civil resistance! Nowadays, the Malagasy people are tired of going down to the streets to claim their rights as citizens. Why make the strike if it is to have each time the same scenario: Teaser bombs, lost bullets and blood flowing, as was the case in 1972, 2002, or in 2009? Why manifesting because it is the politicians who benefit in the end? Today, people prefer to stay at home and rant about the social network instead of expressing their frustration in public and questioning their leaders. And yet, it is not the subjects of contestation which are wanting. Traffics of all kinds, corruption, bad governance, lack of accountability of elected officials, non-respect of laws, hamper development of the country. It is now essential that the Malagasy rediscover that power belongs to them and that they learn how to fight against injustice, without dilatory maneuvering of the politicians, and without violence. As Martin Luther King Jr pointed out, active nonviolence is not a method for cowards. On the contrary, it is a real resistance. It is the art of using non-violent power to achieve sociopolitical objectives, especially through symbolic protests. This practice was popularized from 1921 by exemplary personalities like Gandhi in India, by Nelson Mandela and Steve Biko in South Africa, or Martin Luther King Jr in his fight against segregation. The Malagasy also experimented with nonviolent civil resistance, for example through publications in satirical journals under colonization, but the practice gradually lost face to the rise of the military and police repression, but Also facing the weariness of the main concerned - the citizens. Contemporary movements such as Wake-up Madagascar are now trying to awaken citizens' consciences and to revive non-violent civil resistance. Short-lived symbolic actions that do not create crowds and are therefore not illegal are regularly organized to denounce the fact of society that make jasper. Expose empty plates to say that the Malagasy are hungry, to walk in the streets of Antananarivo to demand the ratification of a charter on democracy or to make the dead on the place of independence in the city center of the capital to denounce the words which undermine the country are for example, part of the non-violent civil resistance. It is precisely to spread this philosophy on the desire for change through non-violent actions that many projects such as LIANA or Learning Initiative Aiming at Non Violent Action which was initiated by Wake Up Madagascar, Liberty 32 and the WYLD program Women and Youth's League for Democracy with the support of the International Center for Non-Violent Conflict. Since the 70's during the 1st Republic in Madagascar, Malagasy people have been manipulate and influenced by politicians who wants a place on government by force. This article is about about my own personal opinion. You can add a comment, give suggestions or critics", u'entity_id': 813, u'annotation_id': 10059, u'tag_id': 1448, u'entity_type': u'post'}, {u'quote': u"And there is an additional hurdle to overcome; I am using an unfamiliar medical paradigm and technique that people do not necessarily have trust in [at first] - and I am doing so outside of the usual recognised channels of 'medical authority'.", u'entity_id': 18817, u'annotation_id': 10066, u'tag_id': 1449, u'entity_type': u'comment'}, {u'quote': u'Problems still remain, not least with the institutional resistance to acupuncture \u2013 often based on little more than ill-informed prejudice against \u2018alternative\u2019 medicine. There are clashes within the acupuncture community, as well, on how best to treat, and issues with providing quality-assurance and redress to patients whilst working outside the usual channels and institutions of healthcare.', u'entity_id': 549, u'annotation_id': 10065, u'tag_id': 1449, u'entity_type': u'post'}, {u'quote': u"Attitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'.", u'entity_id': 21278, u'annotation_id': 10064, u'tag_id': 1449, u'entity_type': u'comment'}, {u'quote': u'There\u2019s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production.', u'entity_id': 38856, u'annotation_id': 11865, u'tag_id': 1450, u'entity_type': u'post'}, {u'quote': u'With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women\u2019s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.', u'entity_id': 6376, u'annotation_id': 10082, u'tag_id': 1450, u'entity_type': u'post'}, {u'quote': u'A group of citizen scientists at Counter Culture Labs, a hacker space in Oakland, California has been developing an open-source protocol to make insulin for about a year and a half. The world needs more economical sources of insulin because 1 in 2 people who need it lack access to insulin worldwide, and this burden falls disproportionately on the poorest communities. Longer term, we hope that by starting with insulin we can broaden our scope to develop more general protein engineering capabilities and provide a practical foundation for small-scale\xa0groups working in distributed fashion\xa0to experiment with and produce other biologics.', u'entity_id': 859, u'annotation_id': 10081, u'tag_id': 1450, u'entity_type': u'post'}, {u'quote': u'How to distribute value in a fair way?', u'entity_id': 6439, u'annotation_id': 10080, u'tag_id': 1450, u'entity_type': u'post'}, {u'quote': u'More in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.', u'entity_id': 25049, u'annotation_id': 10079, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.', u'entity_id': 20068, u'annotation_id': 10078, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u"provided healthcare. And why it disappeared with modernity. According to him it\xa0was basically held together by the need to manage an important resource- water.\nIn Matera there is a huge man-made underground reservoir of water, and a system for accessing it through wells. Each well is situated in a courtyard shared by a number of individual family houses. They collectively manage their shared well and according to him this was the key reason as to why there was\xa0such a strong sense of neighbourhood and mutual care amongst residents. Because of the day to day interaction and mutual dependence on one another to responsibly manage the shared resource. When the state moved people into modern dwelling (in the 80's?) then they had running water etc. No need for daily interaction and no dependency - the system broke.", u'entity_id': 33793, u'annotation_id': 10077, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 10076, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'After all, choosing to make an investment in a grant application is different from making a sale, and requires different resource allocation and a strech\xa0anyhow - so of course choices at each time\xa0matter whether or not you are looking to position yourself or not.', u'entity_id': 17366, u'annotation_id': 10075, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'thanks for your support. To your questions Alex: Yes they are allowed to leave the camp. Its kind of hard for them to bring\xa0friends inside who dont live there though (pretty weird feeling because it was so easy for us to enter)\xa0\nWe actually had a little experiment today and brought materials like duckt tape, cable ties, strings, cardboard (materials that you dont necessarily need proffessional tools for) to one room to see what would happen. Just after a little time os insecurity they started finding solutions in terms of "unpacking". That seems to be the biggest issue.. The room is a organised mess and they wanted to have items to put their stuff in. It was a really cool experience to see how everyone together was solving problems. In the end we had two really nice shelf constructions!\nThere is a lot of unused material inside the camp, that\xa0is going to be thrown away.. if there would be better communication between the organisation and the refugees they could probably use these too.. (to be fair: the Malteser who are running the camp are already having kind of good communication.. so far we only good positive feedback and lots of permissions!)\xa0\nBut i really like the idea of going out of the camp to get materials,\xa0also because in the end its about not only having the courage to hack the "comfort zone" but to feel able and free in the "outside world" (that is really a feeling of home)', u'entity_id': 21277, u'annotation_id': 10074, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches. The may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the "distilled" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern. Another issue is cost effective and clean transportation/distribution. There is a reason mankind mostly spread along rivers for a very long time.', u'entity_id': 25788, u'annotation_id': 10073, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?", u'entity_id': 23803, u'annotation_id': 10072, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 10071, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'Resource efficiency: How to get better at covering necessities of both refugees and citizens/ residents on very limited resources? As an example Jordan is one of the most water scarce countries in the world and 70 per cent of the population suffers from inadequate water supply below the national standard of 100 liters/person/day. Aging infrastructures, inefficiencies in operation and maintenance. interrupted provision of water services etc. Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc? Affordable, modifiable technologies are required to manage the current crisis as well as to secure peace in the region', u'entity_id': 5234, u'annotation_id': 10070, u'tag_id': 1450, u'entity_type': u'post'}, {u'quote': u'"Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water." \u2013 To the point. Religious and cultural affiliation is often simply a lobbying / collective action tool for mundane interests.', u'entity_id': 9973, u'annotation_id': 10069, u'tag_id': 1450, u'entity_type': u'comment'}, {u'quote': u'If we are to achieve peace at home, we need to think about how we tackle legacy injustices against people in different parts of a globalised world. The central pillar is property law and ownership. As Ethiopians learned, it makes sense to start there and not let up till an acceptable solution is reached.', u'entity_id': 4134, u'annotation_id': 10068, u'tag_id': 1450, u'entity_type': u'post'}, {u'quote': u"Rwanda is one of the most densely populated countries in Africa and the pressure on land has often been put forward as an important factor in the 1994 genocide. I cannot remember where I heard that in the case of Rwanda there were more intra-ethnic murders than between different ethnic groups... the genocide was partially fueled by the need to free up resources. If memory serves me, they had a system ( currently being reformed) in which all land would be passed on to the first son. Which left a class of landless, disenfranchised young men with no hope of accessing a brighter economic future unless some of that land could be freed up...\nIsrael and Palestine is another example. At the source of this conflict, according to Bo Rothstein, lies mixing of religious rhetoric with what is essentially a fight over assets. He claims that you would create the foundation for lasting peace by focusing on resolving the land/economic disputes with compromises for everyone (Swedish article): http://www.svd.se/\u2026/markavtal-kan-stoppa-valdet_3777014\nOther examples of legacy injustice include (thanks @Jaycousins ):\n\nEgypt - land is divided amongst all children so within a couple of generations everyone has a tiny patch they can't profit from - the result is illegally constructed tower blocks on most of the rare and fertile land in Egypt and a lot of in-family tensions. \nLikewise In England or any other Western Country, the peasantry had their inheritance stolen out from under them long before the lords and merchants started robbing foreign soil. \n\u2026 There is much to be learned from Ethiopian history about the importance of tackling inequalities in distribution of property and use rights for building lasting peace. Especially in societies where formal property laws and customary property rights arrangements exist in parallel. I believe some of those lessons are also relevant in societies where land rights are secure but ownership of property is highly concentrated.", u'entity_id': 4134, u'annotation_id': 10067, u'tag_id': 1450, u'entity_type': u'post'}, {u'quote': u'I think the time has come to disruption in health care, and care services in general. Because? Because, as the OECD explained, per capita health spending grows much faster than the product income. In 1970, healthcare absorbed a respectable 5.2% of the average developed country GDP. In 2008 it absorbed 10.1% ( source ). The system is under stress, and often - as in Greece - reacts denying the services to those most in need.', u'entity_id': 4913, u'annotation_id': 13012, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'The maker movement and biohacking interest me deeply, due to their potential to overcome most of challenges the African Health system faces (e.g. many hospitals lack the basic materials, like microscopes). The possibility to modify hardware (e.g. connect a solar panel to a PCR machine and so on) is an advantage.', u'entity_id': 37182, u'annotation_id': 11768, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'Testing many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here\xa0(cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequences.', u'entity_id': 6291, u'annotation_id': 10128, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'With the proposed health care cuts as well as the general trend our government is taking, we fear that some heightened level of austerity will be upon us. As resources to critical health infrastructure are being threatened, as evidenced by Planned Parenthood cuts, the war on women\u2019s health, and the potentials for immigration officials to use health institutions as a screening tool, we are increasingly seeing a need to provide clinical as well as educational resources. Because of the immense cost and regulatory difficulty of providing clinical care in NYC, we need to seek and develop work-arounds. As we see the needs increasing, cuts being made and draconian measures to make non-violent actions to protect water punishable with prison sentences, we can only imagine a future where care for ourselves and our fellows will become increasingly criminalized. Therefore the steps we make to gain and share skills and develop subterranean practices of care can return some of the agency we\u2019ve lost to the professionalization of medicine and the profitable mystery that is our bodies. As we think about expanding our capacity, we don\u2019t want to just \u201cfill in the gaps\u201d of public health infrastructure. We need to slowly break our dependence on these institutions in all the ways that we can and also look for ways to use them to our advantage. We think this happens through sharing knowledge and skills, an emphasis on preventative care, and finding ways to manipulate existing structures to allow us to move forward on this path of autonomy.', u'entity_id': 6376, u'annotation_id': 10127, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u"I am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data,\xa0thanks\xa0to their size. Smaller companies can't do much with the\xa0data (they don't have eg. the $10,000 3D printer for it) and the indigenous communities can't either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be\xa0closer to a transaction (a gift, even).", u'entity_id': 11937, u'annotation_id': 10126, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Thank you for your encouragements. In fact when i volunteered with the world Bank, which took me to 25 villages in Cameroon to work with community health centers, what i saw grieved me so much in terms of infrstructure, sanitation and equipments. No lights at the clinics and lack of portable drinking water . Patients carry water from natural springs to take their drugs and minor or major surgeries cannot be performed at night due to lack of power supply. All of these, affects the quality of health care delivery. I am currently working on a proposal to help these health units get bore holes and solar enegry to power \xa0up their facilities. Any links, contacts for funding will be of great help.', u'entity_id': 21990, u'annotation_id': 10125, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10123, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 10424, u'annotation_id': 10122, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'The group that started the initiative were limited to leftover equipment from the previous clinics\xa0and a small amount of supplies that they carried in with them.\xa0 One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from\xa0accessible healthcare.', u'entity_id': 734, u'annotation_id': 10121, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'UE Lifesciences, a company with offices in the U.S. and India, has developed the ibreastexam, a low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.', u'entity_id': 803, u'annotation_id': 10120, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'Broadly, when you\u2019re dealing with delivering care for complex health conditions in resource-poor settings, there\u2019s two issues:', u'entity_id': 564, u'annotation_id': 10119, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'We face two main challenges. First, while we are a group of talented and curious folks, most of us are learning challenging lab protocols from scratch, and second, we\u2019re working with limited amounts of time and money, fitting the work into gaps in our schedules left by work or school, and mainly relying on surplus equipment and reagents that add delays and uncertainties to our work. So progress can be slow and involve a lot of detours on top of those implied by the already uncertain nature of scientific investigation, and we have to dig deep to figure out what to do next when something goes wrong. We do our best to learn fast, but it\u2019s difficult to follow up on everything we should with our limited time and resources and background knowledge. There\u2019s a lot of practical wisdom around making insulin that doesn\u2019t show up directly in the papers published in scientific journals, and we\u2019re learning these nuances of making things work as we go. Much of the value we hope to provide to the community is documenting as much of this practical wisdom as we can, and perhaps eventually automating the kind of work we\u2019re doing by hand right now.', u'entity_id': 552, u'annotation_id': 10118, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 20496, u'annotation_id': 10111, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.', u'entity_id': 19161, u'annotation_id': 10110, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u"@Noemi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way. But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could\xa0 make a general call and most of the NGO's worked separately. We 've tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.", u'entity_id': 17482, u'annotation_id': 10109, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Unfortunately, the public sentiment is negative. Mass media shape the opinion that the refugees stopped crossing borders, so people believe that they stopped coming. Others falsely believe that refugees are to blame for anything wrong. And since the beginning of the summer, most volunteers disappeared. This has, inevitably, resulted in a fatigue in the area of refugee care.', u'entity_id': 737, u'annotation_id': 10108, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u"Thanks, @Alberto. Couldn't agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.", u'entity_id': 15329, u'annotation_id': 10107, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u"don't know what these doctors are actually frustrated with. I guess an inhumane amount of patients to see every day might be one of the reasons. Still, I would suggest there is a huge lack of empathy training during their studies and work, and maybe this is why they're incapable of approaching their patients in a more personal, compassionate manner.", u'entity_id': 12427, u'annotation_id': 10106, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 10105, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19234, u'annotation_id': 10104, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Over all this positive improvement still hangs the uncertainty of the future. Volunteer numbers have decreased. Aid donations have slowed. Some organisations struggle to fundraise the money needed to provide services on the camp - for the first time since last year refugees on the camp report hunger and malnutrition.', u'entity_id': 536, u'annotation_id': 10103, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'Many of the participants complained about the lack of resources to provide education or training for newcomers. Others mentioned the provision of health and social care services, especially psychological support for the traumatised. I heard a lot of calling for more resources to be put into existing services, but little examination of how existing services are performing and even less awareness about more effective, flexible and cost-efficient approaches.', u'entity_id': 5234, u'annotation_id': 10102, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'how hospitals and clinics were becoming unsustainable', u'entity_id': 10231, u'annotation_id': 10101, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u"Rwanda is one of the most densely populated countries in Africa and the pressure on land has often been put forward as an important factor in the 1994 genocide. I cannot remember where I heard that in the case of Rwanda there were more intra-ethnic murders than between different ethnic groups... the genocide was partially fueled by the need to free up resources. If memory serves me, they had a system ( currently being reformed) in which all land would be passed on to the first son. Which left a class of landless, disenfranchised young men with no hope of accessing a brighter economic future unless some of that land could be freed up...\nIsrael and Palestine is another example. At the source of this conflict, according to Bo Rothstein, lies mixing of religious rhetoric with what is essentially a fight over assets. He claims that you would create the foundation for lasting peace by focusing on resolving the land/economic disputes with compromises for everyone (Swedish article): http://www.svd.se/\u2026/markavtal-kan-stoppa-valdet_3777014\nOther examples of legacy injustice include (thanks @Jaycousins ):\n\nEgypt - land is divided amongst all children so within a couple of generations everyone has a tiny patch they can't profit from - the result is illegally constructed tower blocks on most of the rare and fertile land in Egypt and a lot of in-family tensions. \nLikewise In England or any other Western Country, the peasantry had their inheritance stolen out from under them long before the lords and merchants started robbing foreign soil. \n\u2026 There is much to be learned from Ethiopian history about the importance of tackling inequalities in distribution of property and use rights for building lasting peace. Especially in societies where formal property laws and customary property rights arrangements exist in parallel. I believe some of those lessons are also relevant in societies where land rights are secure but ownership of property is highly concentrated.", u'entity_id': 4134, u'annotation_id': 10100, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u"'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?", u'entity_id': 10261, u'annotation_id': 10084, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'the demand for professional care (health care, social care, daycare for children, care for elderly people\u2026) seems limitless, but the resources our economies allocate to it clearly are not', u'entity_id': 5510, u'annotation_id': 10083, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'The cost of providing care in this labour-intensive business has increased significantly because of the introduction of the National Living Wage. The fees paid by local authorities on behalf of poorer residents no longer cover the cost of providing accommodation, food and staffing. Care homes make up the shortfall by charging higher fees to privately funded residents. Social care analyst William Laing tells Evan Davis that private payers subsidise publicly funded residents by, on average, \xa38000 per annum. But this is not an option in less affluent areas with a shortage of fee paying clients.', u'entity_id': 29077, u'annotation_id': 10117, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Alex and Tomma can of course give you a more informed view, but on the top of my head I ask myself what goes in the mind of someone who landed there and expects this to be\xa0temporary and short, only to see that days go by and turn into months. Volunteering is predicated on\xa0some sort of idle capacity - but would those trapped perceive that they have that time? with being busy to figure out their own situation and wanting to escape\xa0it.. (Alex makes the point of difficulty to engage\xa0here\xa0- fyi\xa0I very much liked the idea of going through community leaders to see what possiblilities are worth trying\xa0or not).', u'entity_id': 25129, u'annotation_id': 10116, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'Accessibility of Resources:\nIn the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late.\n\nThis has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues?', u'entity_id': 724, u'annotation_id': 10115, u'tag_id': 2181, u'entity_type': u'post'}, {u'quote': u'What does such a sum for these very poor household ? Since a kilo of white rice grew 1 200 Ar /20 cent of euro \xa0a bag of charcoal is about 20 000 Ar /5 \u20ac, \xa0the scholarship of a child for the 1St grade is about 60 000 Ar / 15\u20ac \xa0even in public school this amount is including supplies and other overhead ...\xa0Still, nothing concrete is well engaged to alleviate a little bit sufferings of this high proportion of the population.', u'entity_id': 20018, u'annotation_id': 10114, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u'placing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?', u'entity_id': 29375, u'annotation_id': 10113, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u"@Village-Psy it's a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we'll have the chance to care about us better and having fun as you suggest.", u'entity_id': 24150, u'annotation_id': 10112, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u"It s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.", u'entity_id': 10128, u'annotation_id': 10085, u'tag_id': 2181, u'entity_type': u'comment'}, {u'quote': u"I once helped supplying refugees with clothes. Our group of volunteers carried box after box and it would happen that some of the refugees ask to help us. We would refuse their offers and told them that it's okay to go rest and let us do the work.\nI didn't realise at that time that we treated them like children, belittling them, taking their integrity and giving them the feeling of uselessness. Out of arrogant goodwill.\n\nSo how can we care, without degrading them? How can we help re-establishing self-esteem and self-awareness, instead of belittling them? It's clear that they know better about their situation than we do, so how can we support them in finding their own solutions and learn from them, instead of imposing our solutions on something that we have absolutely no clou of?", u'entity_id': 665, u'annotation_id': 10129, u'tag_id': 1452, u'entity_type': u'post'}, {u'quote': u'Breathing Games (www.breathinggames.net) promotes respiratory health by encouraging each citizen to take care of their health. We create educational and therapeutic games, devices to measure the breathe, and distributed data systems to inform public health practices, and policies.\n\nWe create a commons \u2013 collectively managed resources that are freely accessible and can be used and enriched by everyone \u2013 by spurring collaboration between people affected, caregivers, and passionate professionals to build on the collective intelligence.\n\nThe games produced participatorily are meant to improve the quality and life expectancy of people with respiratory problems \u2013 by educating, transforming therapy into games, and promoting healthy habits. They can be reused and adapted by everyone to address local problems and needs, as long as the free/libre and open-source licences are maintained. We also develop open-source hardware such as flowmeter for domesic use. This material shall enable everyone, in all countries, to get indicators about his health (lung capacity tests), and shall also provide decentralized, anonimyzed data to advance public health research (blockchain/IPFS).\n\nOn top of that we have been building a community of people to further develop and distribute the games. We successfully organized gamejams about cystic fibrosis and asthma in Switzerland and in Canada, and plan other events on breathing health and chronic respiratory diseases in the next months. The audience is huge: 1 out of 5 people in the world suffer from chronic respiratory diseases, and half of them do not follow the therapy as agreed with their caregiver.\n\nKey to the success of this initiative is the socio-economic, non-exclusive model we developed, as well as the platform we use to log contributions and make the collective effort visible. We use agile development methodologies and allow members to self-organise, so that we build on the collective intelligence and transform ideas into sustainable, scalable products and services.\n\nThe participatory, inclusive approach enables us to build research-backed games that also are attractive and fun to play with. Interdisciplinarity helps us gain a multifaceted, holistic vision of healthcare and fosters collaboration between different parties, beyond institutions and countries.\n\nBreathing Games is a signatory of the United Nations Global Compact and of the Open Source Initiative.\n\nDiscover more about us at www.breathinggames.net', u'entity_id': 735, u'annotation_id': 13013, u'tag_id': 2182, u'entity_type': u'post'}, {u'quote': u"August 2016, Breathing Games took part to the Open & Change Care application to MacArthur's Foundation.\nApril 2017, we were selected for a two-weeks residence in Milan, organized by EdgeRyders, WeMake and OpenCare.\nWe document our residence in following spaces. Feel free to contact us to contribute!\n\nMain document\nRepository\nSource code (GitLab)\nImages\n\n\xa0\nFurther articles on EdgeRyders\n\nWorldwide, 1 in 5 people has a respiratory disease...\nIs community-based and participatory health care sufficient?\nSENSORICA and health care\n\nOther threads on EdgeRyders\n\nMaker in residence \u2013 Open call\nMaker in residence \u2013 Welcome\nOpenCare\nOpenCare research project", u'entity_id': 870, u'annotation_id': 10134, u'tag_id': 2182, u'entity_type': u'post'}, {u'quote': u'What if working together for the good of all was the most common business model? Discover A new Economy, starring seven initiatives including Sensorica and ours.\nThanks @Positive-Voice for your comment.', u'entity_id': 29074, u'annotation_id': 10133, u'tag_id': 2182, u'entity_type': u'comment'}, {u'quote': u"@Michel we started with CF and asthma but the idea is that projects emerge in different places. As a patient said, its a doctor's thing to separate diseases... but usually, asthma, allergies, etc are mixed. And yes it will include also games about good breathing and hopefully, people not affected with diseases can also become more aware about their health and invest in prevention. ^^", u'entity_id': 26038, u'annotation_id': 10132, u'tag_id': 2182, u'entity_type': u'comment'}, {u'quote': u"Nice work @breathinggame, It's really a good revolution therapy treatment for lungs and chest weakness . I'm sure that is not only those who have chest disease but also those who are in good condition. It's really needs to tell that it's a personal device. Is not necessary to tell that kids are curious and they can bring trouble sometime.\nIs there any level for \xa0any step of lungs illness? \xa0And is that need any assistance to check the evolution of the patient?", u'entity_id': 24000, u'annotation_id': 10131, u'tag_id': 2182, u'entity_type': u'comment'}, {u'quote': u"Hi @Noemi and @Alberto. Thanks for your feedbacks. In 2014, we started with the positive expiratory pressure therapy for CF children. It was in fact not the best move as the exercice takes about 30 minutes daily, which would require a lot of resources to have interesting games, plus the fact that the exercice is quite strict, so challenging to make it interesting. We then thought about other, more free gameplays, which we have to develop. We are now working on mini-games for asthma, that are about triggers and how to take the medicine. We want to reuse the work done for CF to build short games for aerosoltherapy.\nRegarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved.\nMany learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels. We invite you to subscribe to our YouTube, where we are going to release 15 interviews of what participants learned during the last gamejam. In the next months, we intend to do gamejams in Montreal, Geneva, and possibly Paris and Lima if you d'like to join there or remotely!", u'entity_id': 19731, u'annotation_id': 10130, u'tag_id': 2182, u'entity_type': u'comment'}, {u'quote': u'And this is without even considering that, in some circumstances, response has to be fast to be at all useful!', u'entity_id': 15560, u'annotation_id': 10135, u'tag_id': 1454, u'entity_type': u'comment'}, {u'quote': u's they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state "If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn\'t want to be sick like that so he stopped".', u'entity_id': 33824, u'annotation_id': 10136, u'tag_id': 1455, u'entity_type': u'comment'}, {u'quote': u"Hi @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it's slow progress, as we can't (and wouldn't want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don't know if this will come to a Circle sometime. It might.", u'entity_id': 25790, u'annotation_id': 10138, u'tag_id': 1456, u'entity_type': u'comment'}, {u'quote': u"Hi @asimong, super interesting reading about your cohousing community and the strategies you're exploring\xa0in seeking ways to\xa0care for\xa0each other's well being. I'm really curious to know more about your expereince with\xa0restorative circles and if the\xa0members who were trained have begun leading them. This is a model we've been looking at for our group. Our collective mental health, especially\xa0in the last\xa0year, has become a major challenge and focus for us. We are not in a co housing situation now, but we try to share as much of our life and resources we can while living in a neighborhood together in NYC. Would love to hear any of your experiences or\xa0strategies\xa0for\xa0dealing with conflict, care for each others emotional,\xa0mental and spiritual well being.", u'entity_id': 24158, u'annotation_id': 10137, u'tag_id': 1456, u'entity_type': u'comment'}, {u'quote': u"I would like to make a comment to your idea and pssdgroup5\xa0I must say that it is a brilliant topic and also a\xa0very huge space to contribute and envelope students and helping them on their way forward.\n\nI can value this very good, because my country Kosovo ( FYR Of Yugoslavien ) is the only state in the Europe Union which citizens are forbiden to travel abroad Kosovo,although we have family members and friends in every country in Europe we are not allowed to travel in Schengen Zone without a special permission which is permitted to only 10% of the popullation. The youth and the students are suffering from this, making them unable po expand their knowledge and reach higher level of education, we are censured to one of the human rights, free movement of the popullation.\n\nThere are several student exchange programs with the United States and the EU which would be very helpfull to start sharing and collecting new connections and educations. I have needed such a exchanging programm as a student, eventhough i didn't make it to be a part of an exchange program as a participiant.\n\nThumbs Up and wish you all the best...", u'entity_id': 7661, u'annotation_id': 10139, u'tag_id': 1457, u'entity_type': u'comment'}, {u'quote': u'This made me think of trying to change the context of the concept and switch to scenarios such as the activity of ONGs like Doctors Without Borders, or thinking at care issues\xa0in\xa0refugee camps on European soil\xa0at this present day.\nI believe that re-thinking the service/app in terms of the specific needs in the scenarios above could lead to\xa0interesting solutions and could work for different reasons:', u'entity_id': 33771, u'annotation_id': 10141, u'tag_id': 1459, u'entity_type': u'comment'}, {u'quote': u'My name is Erika. With Luca, Jacopo and Alice we started\xa0Dynamoscopio\xa0("those who observe change"). We are a strange mix of designers, researchers, and practitioners of urban transformation. We are anthropologists, architects, economists.\nIn 2012 we got interested in a neighborhood called Giambellino-Lorenteggio, in Milan. It was undergoing change, and a tension ran through it. Its eastern end is a heavily hipsterized area, with lofts and cool parties connected with the mighty\xa0Furniture Fair. To the west there are large industrial settlements (Vodafone Italia, for example). Line 4 of the Metro is under construction here. The value of real estate is going up, or soon will. But the neighborhood itself remains low-income, home to many marginalized people. 25,000 people here qualify for subsidized-rent accommodation. Many of them can survive only because they do live in subsidized housing. Many more would have a right to, but the city does not have enough apartments available. So they are stuck in a queue.\nThe neighborhood was (and still is) vulnerable to gentrification. It only takes a small increase in rents to price many people out of the neighborhood. We took a political stance that people should not be driven out, and moved in.\nFirst we investigated the area, and put our findings into a documentary film (trailer). As we did so, we fell in love with the local market,\xa0Mercato Lorenteggio\xa0(henceforth ML). This market had a problem: in 2005 a large supermarket had moved into the area. Its competition was driving many local shops out of business \u2013 including several of those in ML. It was clear that the market was on its way out.\nBy then, we had figured out that the neighborhood lacked resilience. Nonlocal Milanese never go there, and why would they? And even the locals do not form the thick web of social relationships you find in a healthy community. We knew one thing: working in Lorenteggio meant spending most of our time dragging people out of their apartments.\nWe tried to draw a sort of map of desires and problems surrounding the market. We mapped the social actors around it: the local people, the municipality, the nonlocal Milanese, the shopkeepers. The shopkeepers seemed the most promising agent of change. They are local businesspeople: if the neighborhood does well, they do well. ML itself could serve as a focal point. If we could revive it, we could show the local community that it can work its way out of a bad situation.\nSo we did several things.\n\n\nWith the shopkeepers, we redefined ML\'s unique value proposition. The supermarket would always beat us on price, and on opening hours. So we invented a brand we call DOP, Denominazione di Origine Popolare (People\'s Designation of Origin). This means local products \u2013 Milano is a farming city, with many farms to the immediate south of the city. It also mean "new local" products, for example we sell\xa0teff\xa0used in Eritrean and Ethiopian cuisine.\n \n\nWe made it clear that these businesses are the natural allies of the neighborhood. For example, we have solidarity campaigns. One is called "Fai la spesa per la tua scuola" (shop for your school). Shopkeepers donate part of their income to the local elementary school. Other local partners expressed interest in participating.\n \n\nWe mobilized the community on restoring the fa\xe7ade of the ML building. A Milan-based company donated the materials; the local people contributed manpower. Physical work on the space creates ownership and mobilization. Also, it was a great party (timelapse video)!\n \n\nWe pushed the mixed use of ML as a place for culture and socializing as well as commerce. For example, we organize courses of Arabic languages (requested by many migrant families), knitting events, etc. The market has wide corridors, and can host up to 1,000 people.\n \n\nWe moved in ourselves. Dynamoscopio runs a tiny cultural space (20 square meters) inside ML. We offer wi-fi too.\n \n\nIn general, we are trying to reinvent the physical space of ML and the kind of local commerce that it offers.\nWho pays for this? We started out with grants. Milan is home to several charitable foundations, and some of them focus on the poorer neighborhoods. With time, we are moving towards a more sustainable mix of revenue streams. Even the shopkeepers, now, are chipping in: this is great, because it a sign of increased sustainability. Also, the work we do in Lorenteggio is good PR, and it helps Dynamoscopio get clients.\nWe think we are carers, in a way. We care for the community as a whole, rather than for any one person in it. "Taking care" in this context means keeping ML open and thriving; and that, in turn, means contributing to them getting income. The shops in ML are holding the line of the viability of the whole community.\nWe are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too.\nConsidering, our work with ML is going rather well. In 2012 it was on its way out, with several shops closed: in 2016 all stalls are in use, and the market is thriving. The space has become more beautiful and welcoming.\nStill, there are many things we would like to improve. For example, last year we organized two "swap markets", and they failed badly. Both events were popular, with a lot of people in attendance. But these were people from outside the neighborhood, many of them hipsters. This created tension, because the locals see them as harbingers that they will be priced out of the neighborhood. Another pain point is that we are unable to monitor our impact. Shopkeepers are reluctant to disclose how much money they are making. We do not even have a system to count the number of people present in the market. We would love to have some kind of tool, but somehow this sort of work always gets deprioritized, there is so much to do.\nAlso, we are not sure how much longer we can afford to stay engaged with ML. But we worry. What happens when we stop pushing? Another example: for a while, a guy named Manuel ran a vegetable garden outside ML. People loved it. But when Manuel withdrew, the whole thing dried out. These dynamics look great, but they are not always sustainable.\nDo you know of any similar experience? We would love to compare notes.', u'entity_id': 804, u'annotation_id': 10142, u'tag_id': 1461, u'entity_type': u'post'}, {u'quote': u'Thanks for the comments. \xa0Always impressed with the level of analysis within the group. \xa0I think our group tries to reflect the larger feeling within the world at the time: that we must act as bridges to something else. \xa0Many of us come from the anarchist model of thinking, and in the US, that comes with a heavy focus on destruction. \xa0Mainly in contrast to the NGO/professionalization model of "bandaids" and objectification. \xa0But how we see the parallels now is that we must no longer allow ourselves to be motivated by a destruction entity. \xa0Rather we must begin building the worlds that we would die for. \xa0A world worth dying for. \xa0Similar to the examples you all used, there is a strong movement to not reject a destructive attitude (revolutions being inherently destructive) but recognizing that our strength now is our potential to offer the world a new vision of life, the "good life/buen vivir" of the Zapatistas. \xa0As such, I work in a public hospital and acknolwedge the needs for institutions at this time. \xa0But always with an eye towards utilizing towards our ends, not becoming dependent on the institutions/NGOs for a way of life.', u'entity_id': 20144, u'annotation_id': 10144, u'tag_id': 1462, u'entity_type': u'comment'}, {u'quote': u'We believe in the utter necessity of revolution, of the development of material lines of power. Questions of care and health autonomy are pivotal to that progression. \xa0From the Greek solidarity clinics to the Zapatistas \u201chealthcare from below\u201d to Black Panther Clinics and GynPunks, there is inspiration for this path all around us. \xa0We begin by finding each other.', u'entity_id': 6376, u'annotation_id': 10143, u'tag_id': 1462, u'entity_type': u'post'}, {u'quote': u"Alzheimer\u2019s Wristband <3\nIdea is about helping the families of the patients who have alzheimer's at last stage. We know that people who has alzheimer's has a bad habbit of running away of house or indoors to outdoors. Idea is about prototyping a Wristband with a LCD screen which gives the patient info about their home and family members basic infos. How they love him and want to see him now... At the same time the wristband will sent info about where the patient is, \xa0what is his hearthbeat rates and how far did he goes via GPRS. We should tag the family with RFID so when they come close to the patient, Wristband recognise the family member and says calming infos and sentences to the patient in order to recognize them.", u'entity_id': 777, u'annotation_id': 10146, u'tag_id': 1464, u'entity_type': u'post'}, {u'quote': u"Why weren't we ready? Why didn't governments, NGO\u2019s and independent groups cooperate? And when they did, what happened?", u'entity_id': 550, u'annotation_id': 10152, u'tag_id': 1466, u'entity_type': u'post'}, {u'quote': u"The French government's\xa0reluctance to acknowledge the legitimacy of the Calais camp\xa0has created\xa0a\xa0vacuum.\xa0So,\xa0NGOs have struggled to work in that area. Because they cannot work\xa0under license, they cannot reduce\xa0the suffering there, except on a micro\xa0scale.\nPerhaps the idea of sub-optimality in the system comes back to a\xa0wider\xa0idea. One that is floating around in other areas of the site, that of 'unlicensed behavior'. Once\xa0an organisation or NGO becomes 'legitimate',\xa0it tends to deal\xa0with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly).\xa0It becomes more constrained to\xa0do\xa0things 'the correct\xa0way' and less able to focus\xa0on doing what is required.", u'entity_id': 19227, u'annotation_id': 10151, u'tag_id': 1466, u'entity_type': u'comment'}, {u'quote': u"But,\xa0in order for us to 'leave it to the professional' there have to be NGO's willing, and able to step into that role in the space.\nWhat has happened in\xa0Greece and Calais is\xa0we have seen NGOs step up initially, but then step back from the problem.\xa0Often because they cannot work with the changing political situation. I am thinking here of\xa0MSF pulling out of\xa0Lesvos after\xa0the EU-Turkey repatriation deal occurred. (http://www.msf.org.uk/article/why-is-msf-closing-its-moria-project-on-lesvos)", u'entity_id': 19227, u'annotation_id': 10150, u'tag_id': 1466, u'entity_type': u'comment'}, {u'quote': u"NGO's worked separately", u'entity_id': 17482, u'annotation_id': 10149, u'tag_id': 1466, u'entity_type': u'comment'}, {u'quote': u"As for Medecins sans fronti\xe8res, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,\xa0 are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.", u'entity_id': 23874, u'annotation_id': 10148, u'tag_id': 1466, u'entity_type': u'comment'}, {u'quote': u'The comparison of the dynamics in\xa0software is fair, but that is not to say that there is not a more favorable outcome. The stakes are also higher when considering medicine. The difference between having or not having a piece of software is not death.', u'entity_id': 12977, u'annotation_id': 10153, u'tag_id': 1467, u'entity_type': u'comment'}, {u'quote': u'Thank you @Natalia_Skoczylas and @Alberto\n\nBeing a country often ravaged by tropical depressions and powerful cyclones I can relate with the debacles faced by @Michel. There have been a plethora of effective adatptation/mitigation measures applied in Bangladesh over the years. And gradually, we have grown quite adept at reducing vulnerabilites. Systematic risk assessment, identification of potential hazards and the placement of a tailored warning system have proven very effacious in reducing damages. However, cyclones are becoming more frequent with variable intensity - an observation supported by reliable scientific\xa0data. Although training, teaching and advising can be effective in raising awareness on survival techniques, a regionwide integrated and inclusive effort is required to truly generate meaningful impact. Please let me know how my expertise can be of further use in this case. Thanks.', u'entity_id': 20497, u'annotation_id': 13014, u'tag_id': 1468, u'entity_type': u'comment'}, {u'quote': u'There is a lot of perceived risk in funding non-institutional projects, especially at the European level where so many stakeholders are involved. How to we allay those fears? What about ethics committees, scientific advisory boards, financial controlling...?', u'entity_id': 6427, u'annotation_id': 10154, u'tag_id': 1468, u'entity_type': u'post'}, {u'quote': u"I saw your post after recent activity on this thread @Alberto... I was wondering if\xa0you have read anything about rites of passage in more detail? What is the aspect that creates stronger cohesion?\xa0Is it the selection process and 'insider vs outsider' dynamic,\xa0is it the sharing of pain and hardship that creates stronger connections between individuals, maybe another reason?\nI'll recommend this book as well for everyone who is interested in the topic.", u'entity_id': 21816, u'annotation_id': 10156, u'tag_id': 1472, u'entity_type': u'comment'}, {u'quote': u"Researchers in this area have figured out why humans have evolved rites of passage, which can be very costly (in some tribes, young men especially have to go through gruesome trials to become full members of the tribe). So where's the benefit? The benefit is that these rituals cement the tribe's cohesion, making it more fit to withstand intergroup competition, a major driver of human evolution (and suspected to have been a driver of non-human primates before we came around). How can rituals cement cohesion across participants? They harness certain biases in human cognition. For example, it has been found that doing things in sync enhances the propensity to cooperate. Consider the following\xa0experiment.", u'entity_id': 19934, u'annotation_id': 10155, u'tag_id': 1472, u'entity_type': u'comment'}, {u'quote': u"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing\xa0 exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.", u'entity_id': 29079, u'annotation_id': 10158, u'tag_id': 1473, u'entity_type': u'comment'}, {u'quote': u'One of the areas that show most clearly the positive effects that community interventions can have are post-conflict efforts. In this post, I want to tell you about the powerful work of theTrust for Indigenous Culture and Health (TICAH) who developed a program with survivors of the Nyayo House Torture Centre and other centres in Kenya. In a follow up piece I will look more at digital systems with a mind to exploring how elements of ritual and and formalised events for expression and listening might be tapped into in new ways to support communities through online means.', u'entity_id': 553, u'annotation_id': 10157, u'tag_id': 1473, u'entity_type': u'post'}, {u'quote': u"I hope you will get the touring exhibition to have a european leg, and come through Lausanne! \xa0To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help!\n\nI left a comment with a few points this morning on the page with\xa0the documentary, but just to ask one more silly question: was it\xa0actually possible to do any fly-fishing on the Bagmati river?? \xa0(are there many fish to catch?? \xa0are they edible?) \xa0\n\nI did some flyfishing long ago in the great northwest and Montana, with great pleasure, but\xa0don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)...\n\nThanks again for sharing, and looking forward to further discussions!", u'entity_id': 21501, u'annotation_id': 13015, u'tag_id': 1474, u'entity_type': u'comment'}, {u'quote': u'For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example.\nFly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments.\nWe will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings.\nThe session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms).\nAs the group will be diverse and there are multiple things to do, we\u2019ll work with a rotation, so that everyone gets to do a little of everything.\nThe session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website.\nWhat we still need for the session:\n\nPeople with fishing experience to teach casting techniques\nPeople who want to facilitate the citizen science experiments\nFishing rods and reels to borrow\nHelp with online presence\n\nAn issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!', u'entity_id': 6429, u'annotation_id': 10164, u'tag_id': 1474, u'entity_type': u'post'}, {u'quote': u'It was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth, a colleague at the State University of New York and a graphic designer, joined the venture early in 2016 and his work has been integral to the project\u2019s success. During Jason\u2019s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project\u2019s publications and the sales of my artwork.', u'entity_id': 576, u'annotation_id': 10163, u'tag_id': 1474, u'entity_type': u'post'}, {u'quote': u"@Matthias, I just came across this article about Washington's rivers... yet the situation not so much different from those we discuss here, and some tips how to engage in different ways with the area.", u'entity_id': 21206, u'annotation_id': 10162, u'tag_id': 1474, u'entity_type': u'comment'}, {u'quote': u"Yes the Bagmati\xa0does have its issues but it's cultural importance is intriguing. The residents of Kathmandu\xa0have been cleaning up the banks of the river for the past 150 Saturdays\xa0and they have not missed a single Saturday yet even during the earthquake which is \xa0it is remarkable. Yes I think that the arts has a\xa0way of bringing together a lot of different groups and using aesthetics is a way to introduce complicated issues \xa0in a accessible manner.", u'entity_id': 14306, u'annotation_id': 10161, u'tag_id': 1474, u'entity_type': u'comment'}, {u'quote': u"And @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I'm following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it's carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let's be realistic for the near term", u'entity_id': 10812, u'annotation_id': 10160, u'tag_id': 1474, u'entity_type': u'comment'}, {u'quote': u'In 2014, I had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800\u2019s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.\xa0 My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset. \nIt was during this installation that I was approached to consider doing a similar project about the Bagmati River that flows though the middle of Kathmandu, Nepal. I was excited about extending my body of work beyond the Western Hemisphere and to working with a culturally diverse community. After initial discussions with professionals, museum staff and community members in Kathmandu, it was clear that there was a great deal of interest in me starting a new project investigating the Bagmati River. I was granted a residency at the Kathmandu Contemporary Arts Center a few months later, and my research began in earnest. Jason Dilworth joined the venture early in 2016 and his work has been integral to the project\u2019s success. During Jason\u2019s and my first trip to Kathmandu in March of 2016, we were able to strengthen past connections to the project while building a larger network of individuals and groups committed to improving conditions in the Kathmandu Valley and the communities outside the valley who live along the river. Support for the Bagmati River Arts Project has grown steadily from the beginning through the assistance of Hatchfund donors, travel support through SUNY Fredonia and a Burchfield Penney Art Center grant. It has continued to grow through the sales of the project\u2019s publications and the sales of my artwork. \nThe Bagmati River Arts Project\xa0includes:\nA. an exhibition at the Siddhartha Art Gallery at Barbar Mahal Revisited in Kathmandu opening on November 20th, 2016. My artwork, water data from the Bagmati River and the video documentary will be presented on the second floor. The first will include artwork by Nepalese artists whose attention focuses with issues related to the Bagmati River. We are also working with the fine art faculty and students at Kathmandu University who will be creating work related to their cultural connections to the river.\nB. a book is being published (available in November 2016) that documents the importance of the Bagmati River, the cause for the pollution, climate change effects on the Kathmandu Valley and its groundwater, and plans to improve the condition of the river. The role of this publication, like the exhibition, is to use aesthetics as a way to make the scientific data accessible to a wider audience. Artists from the United States and Nepal will be included in the publication. The publication will be made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on this website.\nC. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website.\nD. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design.\nAll elements of the project listed above will be finished and presented at the opening of the exhibition in November 20, 2016 when Jason and I plan to return to Kathmandu.\nAn exciting extension to this project is the plan to ship the artwork, publication, documentary, brochures and posters back to the United States where it will tour around the country and, possibly, internationally. Water issues are a worldwide concern and the Bagmati\u2019s perils are not unique. Our hope is that, by touring the exhibition and by combining it with site-specific exhibitions, audiences can create connections between their region and other global communities. There is a good deal that can be learned from the history of the Bagmati as well as from the grass roots efforts that created the Saturday Bagmati River clean-up program and the successful community health initiatives supported by the non-government organizations. All of these efforts has unified the underserved residents of the Kathmandu Valley to address the basic needs in their communities while creating hope and motivating government involvement.\xa0\xa0\nThe Burchfield Penney Art Center in Buffalo, New York is very interested in the merits of the project and they have volunteered to promote and organize the touring exhibition.\nFor more information please contact alberto@albertorey.com.', u'entity_id': 752, u'annotation_id': 10159, u'tag_id': 1474, u'entity_type': u'post'}, {u'quote': u"Get An OpenVillage Ticket: Invite your Intellectual Hero at the event!\n\nHello old and new edgeryders, this is a task you can complete and get a ticket to our community\xa0Festival later this year (Oct 19-21)!\xa0\n\nSteps to complete it:\n\n1) Leave a comment below with the name and affiliation\xa0of\xa0an expert\xa0you want to invite - someone\xa0you know is doing inspiring work,\xa0or dream of meeting! Wait for our\xa0confirmation to go ahead.\n\n2)\xa0Contact/ Email the\xa0expert. Below is an invitation\xa0to OpenVillage which you can use or remix. Also see the Comments with more templates.\xa0\xa0\n\n3) If they accept to come, we'll send you the ticket to the event!\n\n\xa0\n\n[Invitation]\xa0Guest Curator at \\#OpenVillage: support selected healthcare and social projects with sustainability advice and\xa0business development\n\nOpenVillage is a participatory built festival gathering outstanding community projects from all over the world which are on their way to a\xa0new health and social care ecosystem. The Festical is structured in three parts: a speedy\xa0discovery of promising projects from around the world; hands on work on business modeling and sustainability; finally, technical knowledge sharing and learning\xa0new skills from health practitioners, data analysts,\xa0policy makers, investors etc:\n\nDay 1\xa0|\xa0Meeting protagonists of revolutionary health and social care projects\xa0\n\nDay 2\xa0|\xa0Business modeling: hands on discussions and intimate networking with selected projects\n\nDay 3\xa0|\xa0Technical learning and knowledge sharing around health data, policy and investments (example sessions:\xa0Healthcare Paradoxes; Collaborative Design and Inclusion of Migrants, Masters of Networks for advanced data visualization\xa0and analysis, and more).\n\nWe\u2019d like to bring you in for the whole festival, as a guest curator providing support for the business track we call\xa0Financing care. You would be involved in a\xa0low effort in the runup to the event, and our in-house community curators are tasked with keeping you up to speed and point you in\xa0the direction of most\xa0relevant projects.\n\nA process for working together with community Curators\n\nAugust\xa0|\xa0Community curators prepare\xa05 solid sessions & 1 blog post with a synthetic outline which you will receive\n\nSeptember | Preliminary call: Community + Guest Curators\n\nSeptember-October\xa0|\xa0Guest Curators leave comments online with feedback to relevant sessions\n\n#OpenVillage Pre-event\xa0|\xa0Power Pitch Masterclass with curators and session leaders to optimize delivery at the Festival TBC\n\n#OpenVillage Main Event 19-21 Oct |\xa0Guest Curators attend sessions and provide support and evaluation\n\nIf this sounds interesting for you, a first thing to do right\xa0now is to send us a photo and\xa0a short biography. We will announce your participation in a post like this one.", u'entity_id': 6364, u'annotation_id': 13016, u'tag_id': 1475, u'entity_type': u'post'}, {u'quote': u'\u201cWe were not talking about the differences between student areas. It was interesting seeing how there was a lot of variation in how interviews were conducted in the different groups as well as within the group were different. I think what I found was that we had very different styles of leading interviews and how different results. I realised I am used to lead an interview and how it has become my only way for me. And it was really interesting to see there are different kinds of ways to lead an interview. I learned how to lead interviews in design thinking...you are asking for stories and ask 5 times why. It\u2019s completely differnt thing when trying to understand a person. It was a very good experience. And apart from that my main insight is that care is always interactional, its not a one way street. The system of capitalism is making it a one way street because there s wlays money in and something out. It\u2019s not evolutionary.\u201d', u'entity_id': 494, u'annotation_id': 10167, u'tag_id': 1477, u'entity_type': u'post'}, {u'quote': u'\u201cWe were still thinking about what is th goal of being a designer and what is a design process...what is the difference to art or to management/managers job? We came to the point that an artist is focusing on showing problem and designer is trying to find solution and manager is more focused on company\u2019s project and not so much on helping people. It\u2019s a beginning of a discussion.\u201d', u'entity_id': 494, u'annotation_id': 10166, u'tag_id': 1477, u'entity_type': u'post'}, {u'quote': u"Alessandro,\xa0I'm also interested in approaches where the data entry\xa0becomes organic, integrated in your routine, almost happening in the\xa0background. i.e. a wonderful UI UX.\xa0\nI will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I\u2019ll definitely like to deliver a smooth user experience.", u'entity_id': 24217, u'annotation_id': 10169, u'tag_id': 1479, u'entity_type': u'comment'}, {u'quote': u'a story how a team started a medical camp with the intention to help as amany people as possible who otherwise would have not received care,\n\nMedical camps have been running in partnership with the villages of Bupsa and Bumburi attract local people from miles around, many of whom walk for many hours and often days to attend the camps. These medical camps are led by Nepalese professionals who are assisted by qualified volunteers and medical and dentistry students from the UK.\n\nThe long and expensive journey to the hospitals in Laksha and Kathmandu (sometimes taking days) are out-of-reach for the majority living in these low-income communities. Their main source of income is from subsistence farming and small profits are often shared throughout the community. So as you can imagine, when word gets out that these clinics are nearby, villagers flock to them in the hope of securing a cure for their health issues.\n\n\xa0There are currently no permanent doctors in the region, which is home to a large, ethnically diverse population, spread over a number of rural communities made up of low income households. People lack access to basic health care and specialist treatment and have to walk for many days to attend the nearest hospital or else take the long and expensive journey to Kathmandu. The medical camps provide free consultation, treatment and advice from specialist qualified doctors as well as access to free medication.\xa0The goal is to one day provide the communities in these remote Himalayan villages with permanent medical care and qualified staff, rather than a temporary clinic run from an outbuilding of Bupsa\u2019s monastery.\n\nThe group that started the initiative were limited to leftover equipment from the previous clinics\xa0and a small amount of supplies that they carried in with them.\xa0 One of the most common problems witnessed were musculoskeletal disorders (MSDs). MSDs are a widely spread problem facing porters and farming communities who endure hard physical labour day-in-day-out. Muscles, joints, tendons, ligaments and nerves can all be affected, causing discomfort to intense pain. The reduction of these disorders caused through employment is a key objective of the EU through its Community Strategy, proving just how fortunate we are to benefit from\xa0accessible healthcare.\n\nRead the full story here: \xa0http://wildernessmedicinemagazine.com/article.asp?id=1026\n\n\n  \n    mmtrust.wordpress.com\n  \n  \n    \n\nWilderness Medicine in Nepal\n\nMoving Mountains runs small and mobile medical camps in the remote villages of Bumburi and Bupsa, along with the surrounding villages in the Solu-Khumbu region of the Nepalese Himalayas. These medi\u2026', u'entity_id': 734, u'annotation_id': 13017, u'tag_id': 1480, u'entity_type': u'post'}, {u'quote': u'Designer nurse and community growing, a BA in business enterprise and community development, volunteers in a school garden. Outdoor classrooms. Making rural areas more part of the community. Coliving, co working and retreat, mixing mental health, art therapy, yoga/movement and ecology. Beginning to step into Open Source. In last weeks they did a project where they went to visit Cregg Castle (unused): framed as unMonastery, a co-living and coworking retreat over a short period, through the European Capital of Culture 2020 which Galway won.\xa0\u201cMy problem is I do too many things\u201d At #OpenVillage he doesn\u2019t know what he is able to host, as he\u2019s just out of running an event locally. Most relevant is unMonastery.', u'entity_id': 6360, u'annotation_id': 10183, u'tag_id': 1480, u'entity_type': u'post'}, {u'quote': u'To establish rural health centers with provision of vaccinations and proper helath facilities to ensure safe and good health in the region.', u'entity_id': 855, u'annotation_id': 10182, u'tag_id': 1480, u'entity_type': u'post'}, {u'quote': u"I recently randomly read this book http://www.goodreads.com/book/show/13086.Suburban_Nation that I suggest often and that gave me a much deeper knowledge of suburbs.\nFor the countryside, I think that the tendency of the people from this places to go in the major cities could be reversed (especially in Italy) since cities don't represent any more a place of opportunity.\nThis is a much broader argument, but I hope that the platform that we are building could help to experiment new models to solve problems related to this places.", u'entity_id': 25049, u'annotation_id': 10181, u'tag_id': 1480, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 10180, u'tag_id': 1480, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 10424, u'annotation_id': 10179, u'tag_id': 1480, u'entity_type': u'comment'}, {u'quote': u'By making it possible to perform tests, such as an electrocardiogram (ECG) in far-flung villages, the tablet is bringing high-quality cardiac care to remote and often poorly equipped countryside clinics where many Cameroonians go for their health care. It connects rural patients suffering from heart disease, many of whom do not have the means, the time, the contacts or the strength to travel to the big city, with Cameroon\u2019s few, primarily urban-based cardiologists.', u'entity_id': 555, u'annotation_id': 10178, u'tag_id': 1480, u'entity_type': u'post'}, {u'quote': u'This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.', u'entity_id': 671, u'annotation_id': 10177, u'tag_id': 1480, u'entity_type': u'post'}, {u'quote': u"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles,\xa0even skill up in a process that difficult.\xa0\n\nThere are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder,\xa0said something similar about \xa0how conversation in which neither party is an expert can be lifechanging.\n\nI'm curious about\xa0the\xa0group which seems more or less open - can anyone who reports\xa0feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?", u'entity_id': 10263, u'annotation_id': 13018, u'tag_id': 1481, u'entity_type': u'comment'}, {u'quote': u'"Some may call it depression. Let\u2019s say I am wary about medicalisation of the human condition, so to me it is just sadness.\nWhen I was younger these dips were more profound. Debilitating even. At some point a psychiatrist prompted me to take medication. I refused, opting instead to deal with what I thought might be the root causes\u2026.by\xa0changing my profession, lifestyle and social environment.\nEventually\xa0I developed some resilience towards these\xa0inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don\u2019t have on having a shrink try to figure out what is the matter with me\u2026and how to fix it.\nLast week, the sadness returned. This time I am unable to find solace in the work. I am unsure as to why. It is not dramatic and there is no cause for alarm. However, I\u2019ve noticed that the less time I spend on online, the better I feel. In part I think it is because\xa0communication for work purposes and to stay in touch with people about whom I care increasingly happen in the same channels. Which is not sustainable in the long run. So I am leaving Facebook, Twitter and linkedin for now. I will not cancel my accounts, but will not be checking them on a regular basis or keeping them updated.\nIf you wish to stay in touch with me you have several choices:\n1) To be kept up to date with information about Edgeryders, unMonastery and future projects and opportunities I am involved in building, subscribe to Nadia at Work.\n2) If you are interested in reading me on more general topics like culture, tech, politics, art, religion, science, travels and life in general, subscribe to \xa0News from Nadia.\n3) If you want to hang out you can always call me on skype (my alias is: niasan) or come visit me in Brussels, where I now live.\nI do hope you will choose to stay in touch one way or another. To those of you who choose otherwise, thank you for the time we have spent together- I do wish you all the best and hope our paths cross again sooner rather than later.', u'entity_id': 18288, u'annotation_id': 10184, u'tag_id': 1481, u'entity_type': u'comment'}, {u'quote': u'Create a context for storytelling.\xa0\n\n\u2192 Get to know each other + basic needs?\u2192 Expectations\u2192 Communication and identity/sculpture', u'entity_id': 5405, u'annotation_id': 13020, u'tag_id': 2188, u'entity_type': u'post'}, {u'quote': u'Conclusion:Space for care includes a variety of aspects that one should balance nut still take action.\n\n\nIntention\n\n\n\n\nExpectations\n\n\n\n\nContext-setting\n\n\n\n\nStorytelling as a tool not a universal answer\n\n\n\n\nParties\n\n\xa0Passive, Active, ProactiveGive - Receive | Request - response = Communication space around care (actively caring)They are a lot of difficulties in communicating around care.Stories \u2013 legends - can be a tool to not directly address the issue but rely and build on universal stories.\xa0\xa0What then would be 5 steps to design your context of care?\u2192 Current future vs ideal future', u'entity_id': 5405, u'annotation_id': 13019, u'tag_id': 2188, u'entity_type': u'post'}, {u'quote': u"I've also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I'm curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.", u'entity_id': 16180, u'annotation_id': 10192, u'tag_id': 2188, u'entity_type': u'comment'}, {u'quote': u"My work through the GalGael Trust based in the Govan area of Glasgow has offered some hints that actively generating\xa0a healthy\xa0culture is perhaps more effective in achieving in an anchored way the 'good intentions' of policy. Strong values guide actions, decisions and\xa0behaviour, influence language and how we treat one another. Our workshop sees people working, for the most, part side by side. We\u2019ve had people with violent histories, people who suffer agoraphobia, depression and addiction. Yet something about the space we\u2019ve created has meant that people largely get on, there\u2019ve been no violent incidents in our 20 year history and people describe their doctor taking them off medication, sometimes for the first time in many\xa0years.", u'entity_id': 6304, u'annotation_id': 10191, u'tag_id': 2188, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10190, u'tag_id': 2188, u'entity_type': u'post'}, {u'quote': u'One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, "it\'s just a job" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.', u'entity_id': 21701, u'annotation_id': 10189, u'tag_id': 2188, u'entity_type': u'comment'}, {u'quote': u'Sharing some non-mainstream values, and a vision that is not yet shared by the majority of people, there seems to be some kind of assumption that we will provide a safe space for "people like us", a haven from the strain of being minorities who are disregarded, or even criticised, elsewhere. This need for a sense of psychological safety does appear in various ways, sometimes surprisingly. This is often hidden in the rest of society. Otherwise, our needs are probably similar to most people\'s.', u'entity_id': 830, u'annotation_id': 10188, u'tag_id': 2188, u'entity_type': u'post'}, {u'quote': u"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about.\nI frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn)\nCreating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.", u'entity_id': 22200, u'annotation_id': 10187, u'tag_id': 2188, u'entity_type': u'comment'}, {u'quote': u'Kitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like\xa0electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their "guests" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.\xa0\n\n@Alex_Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !', u'entity_id': 16177, u'annotation_id': 13023, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'Lets make it clear:\xa0Quality is one thing, safety is another. Quality depends on the maker = participant. Safety is ensured by facilitator and mentors. Safety is a relative issue. Walking is risky \u2013 you may fall, therefore the neurologist may advice stop walking and use a wheelchair instead (a real casestory). As when we do clinical trials,\xa0the participant must be guided through a \u201arisk assessment\u2019', u'entity_id': 33426, u'annotation_id': 13022, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc.\n\n@WinniePoncelet, it could be very good if you could elaborate on why you don\u2019t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get?\n\nYou have a good point,@WinniePoncelet, \xa0we could imagine raising funds to have a FES bike that people could try locally.\n\nI\u2019ve learned two things recruiting wheelchair users as testdrivers\n\n\nThere is a perception that it may be physically harmful\nPeople are afraid of traffic. There is a perception that there are nowhere to use the a Handbike\n\n\nAs for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.)\n\nAs for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling). \xa0@Francesco Maria ZAVA\xa0and others we could\xa0work on this", u'entity_id': 23387, u'annotation_id': 13021, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'I am wondering, the case of CRISPR the issues are just on ethics and safety? Or behind there is the need of protection of biotechnology industry. \n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentopen science\n  \n    \n    Edit\n    Delete\n  \nNo Commentbiohacking\n  \n    \n    Edit\n    Delete\n  \nNo Commentregulation\n  \n    \n    Edit\n    Delete\n  \nNo Commentopen hardware\n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 37593, u'annotation_id': 11830, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'Reliability and safety. How can you ensure that the community with its contributions (the sum of all) are good quality and safe?', u'entity_id': 6459, u'annotation_id': 10209, u'tag_id': 2189, u'entity_type': u'post'}, {u'quote': u'How do we ensure compliance with legal frameworks and patents?\nHow do we ensure reliability and safety for users?', u'entity_id': 6439, u'annotation_id': 10208, u'tag_id': 2189, u'entity_type': u'post'}, {u'quote': u"That's not quite the plan we've got planned for the project.\xa0We share your concern for questions of safety and ethics so we are only trying to accomplish a proof of concept right now.\nThe goal is first to make normal human insulin\xa0using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the biosimilar regime, which is mid-way between the rigor required in vetting an entirely new drug and that required of a copy of an old one made with strictly chemical means. This was the plan we outlined in our original crowdfunding pitch and remains our current thinking.\nWe'd welcome funding from the NIH or another large funding organization if they'd have us but, among many other reasons to be skeptical about such a \xa0prospect,\xa0I doubt there would be enough that's novel about our work to qualify it as fundable science.", u'entity_id': 26033, u'annotation_id': 10207, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'1) Question 1\xa0(Emad): How to\xa0enroll\xa0in any position within the academic world (or other) to be able to stay in a safe society like\xa0ours\xa0until\xa0they (him and his family) can return back home.\xa0Being\xa0Iraqi and at the end of a PHD in medical science and student visa in England. He is also looking to support his family\xa0financially.', u'entity_id': 16990, u'annotation_id': 10206, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'@Noemi, thank you for your comment. Safety and regulation are very important for us and as a community and a\xa0non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of "regulation by design" as well as "safety by design" we first considered regulation and safety and build our development according to the main guidelines.\xa0\nThen i haven\'t heard about the group\xa0about exploring\xa0open alternatives in (e)health and healthcare\xa0support. Could tell me more ?\nFinally, thank you for both links, they are very interesting.', u'entity_id': 11010, u'annotation_id': 10205, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u"@Olivier hi, welcome on board. Are you part of the group coming together later this month to explore open alternatives in (e)health and healthcare\xa0support?\nI'm adding here two recent\xa0opensource projects\xa0that we know of for medical treatment,\xa0and which\xa0you might enjoy connecting with.\n\nOpen source game apps as solutions to respiratory\xa0diseases!\nEfforts to open up software eg pacemakers for heart conditions\xa0to enable increased security by the logic of: more access -> more resilience and better quality. It would be very appreciated\xa0if you could jump in and tell us\xa0how you cover the regulatory issues so that\xa0your product can\xa0actually be used. For example, what part of your code will you certify and does the fact that it's opensource make it more reliable or not for its future uses?", u'entity_id': 7382, u'annotation_id': 10204, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'potential benefit than the access to the devices in itself.\n\nHowever, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be "ok, let\'s ignore this step and bypass it".\nThere are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents\' costs, etc on the side of providers).\nOf course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that\xa0is almost\xa0"ethical": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as\xa0gut feeling here, but I am open to discuss it in depth later)\xa0the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final "accidents" that will always happen (only that which does not work, will not break).\xa0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model "exploitative", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.\nSo, what would be the general ecosystem\' services that would keep this garden grow orderly? I don\'t see this answered (that\'s not an easy one,\xa0indeed)\nResearch, and "citizen science", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.\nFor the sake of our understanding, let me be pedant and allow me to stress that\xa0disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status.\xa0A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a "because".\n\nI would like to not dig too deep in the question about why the current "solutions" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let\'s be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don\'t normally ask themselves questions like "how long will this work continuously?", "what will be the safety mechanism once it turns off, as instance because of battery exhaustion?", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?",...\nLet\'s not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter "being poor means having too much end of the month"... it may steal a smile, but it\'s a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.', u'entity_id': 23523, u'annotation_id': 10203, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'As an example we experienced that half the participants wanted to take the experimental device with them home. We are not allowed to do that. I\u2019ve only spend around 50 euro to build the prototype in the laboratory, but we are not in the 1970\u2019ies anymore. In the name of assuring \u2018quality\u2019, \u2018safety\u2019 etc, \xa0we need to manufacture, CE mark, register as a medical device and so on!. \xa0To provide a patient with a medical device we need to spend hundreds of thousands of euros on paperwork!!! And who is then going to sell at a reasonable price. \xa0Why should people, already challenged economically by loss of health, spend 5-10 k\u20ac \xa0for a device that could be made much cheaper?', u'entity_id': 516, u'annotation_id': 10202, u'tag_id': 2189, u'entity_type': u'post'}, {u'quote': u'First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months.\n@Rune\nI think we have some miscommunication here. I\'m not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has \'similar\' issues to the issues of open source.\nOn your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by \xa0P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don\'t believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper "Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis.\nThere are many more things we might discuss about regulation, such as the FDA\'s limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM\nBy making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I\'m not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I\'m happy to provide more reading and evidence, when time permits.', u'entity_id': 26028, u'annotation_id': 10201, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'I can\'t really answer your question "Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals?" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms.\nAs for " Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer\'s names? Not sure, but couldn\'t you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product?\nOf course I agree that such probing questions need to be asked, and you can\'t expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome.\nHowever, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term.\nLastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto\'s comment.', u'entity_id': 21955, u'annotation_id': 10200, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\xa0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references", u'entity_id': 21205, u'annotation_id': 10199, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u"I've met \xc9ireann for the first time a couple of months ago, during LOTE5 in Brussels. I mostly remember him for knowing probably all brand new, absurd Twitter accounts, and being able to quote quite a lot of their content.\nThen I have learned a bit more - and the more unveiled, the more impressive it got. There is a great reason for us to team up and work on the challenge together: Hacking, internet security, and medical devices. He knows a lot about that stuff.\n\xc9ireann with his friend, Dr. Marie Moe started investigating the security of pacemakers - as Marie's life actually depends on a little instrument that generates each of her heartbeats. And runs\xa0on a proprietary code. This means she has to implicitly trust the programmers, and despite her and Eireann\u2019s years of assessing devices for security holes, they wouldn\u2019t normally be \u201callowed\u201d to investigate the security of such devices.\nThis implies how little a regular customer of similar devices is informed about the ways they work, what protocols and tools they use, where their data is stored, etc. It has everything to do with person's safety - and still, companies keep most of the key information secret from the users, making them more vulnerable.\nI suggest you watch this great video from 32C3, where Marie and \xc9ireann tell about their journey.\nObviously, the issue of safety transcends this case and applies to a whole range of tools that increasingly improve our quality of life and longevity. The security flaws are potentially causing exactly the opposite, making for a health/life hazard. There are concerns about privacy too, where your medical data flows around the world to companies that may or may not be taking measures to protect it.\nBut that's not all - \xc9ireann works also as an advisor for European Network for Cyber Security (ENISA), has founded http://www.concinnity-risks.com/, and works as a Senior Risk Researcher at Cambridge Centre for Risk Studies. He is loosely affiliated with I Am The Cavalry, a cyber security movement, whose motto is \u201cSafer. Sooner. Together.\u201d\nHe contributes to our OPENandChange application vast expertise in the security of medical devices, and embedded devices. He will be helping DIY makers, programmers, and engineers with training on how to build safer code, and what standards they will want to comply with to produce products for different markets. He's also offering insight into vulnerability research and standards-based research, contributing safety and transparency knowledge to this huge, open swarm OPENandChange wants to become. Lastly, he loves the idea of preparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\nFinally, \xc9ireann has just been announced an Open Web Fellow for Privacy International and he will be taking the word out about our idea while advocating for open cyberspace.", u'entity_id': 712, u'annotation_id': 10198, u'tag_id': 2189, u'entity_type': u'post'}, {u'quote': u'Traffic is\xa0scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition \u2013 it is unusually flat for Italy, and that helps.\xa0When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness.\xa0Bicycle lanes where almost absent. As a consequence, only "extreme cycling" happened: young, fit\xa0men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this:\n\nBut over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles\xa0a day.\xa0Eventually, the city council started to take\xa0cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.', u'entity_id': 26048, u'annotation_id': 10197, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'As to your question "How do you work with or around licensures/certifications to provide safe care?" perhaps @steelweaver and his\xa0experience can help.\xa0He is\xa0in the process of setting up an acupuncture\xa0clinic at the edge of (commercial) regulations.', u'entity_id': 24022, u'annotation_id': 10196, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'If your innovation is specialized, small in scale, or incremental (hence fitting well in the ecosystem where the\xa0incumbents are thriving), maybe it\'s easier to figure out how to obtain certifications and licenses, than how to establish safety nets and sandboxes to work outside of them (formally,\xa0but within the purpose of defending your "users").', u'entity_id': 15136, u'annotation_id': 10195, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u'How do you work with or around licensures/certifications to provide safe care?', u'entity_id': 521, u'annotation_id': 10194, u'tag_id': 2189, u'entity_type': u'post'}, {u'quote': u'Registrations/certifications/licensing are in place as fences, one of the tools in the arsenal of safety in healthcare... it is possible to negotiate ways out when it is proven that safety is guaranteed never the less... this may imply lobbying and meetings with authorities, but one can find examples from prior cases that are useful... as instance medical students can practice some medical activities under mentoring before being graduated and licensed... but the University Hospital has a wide safety net set up...', u'entity_id': 8137, u'annotation_id': 10193, u'tag_id': 2189, u'entity_type': u'comment'}, {u'quote': u"@Alberto have you figured something out for the sales? I see a similar issue popping up for us and we haven't found an answer yet.\nIn our case, there will be some recurring and organic inflow of missions and we're counting on that to make it easier. Though we really do need long shots as well.", u'entity_id': 23191, u'annotation_id': 10215, u'tag_id': 1485, u'entity_type': u'comment'}, {u'quote': u"The traditional solution is commission on sales. We found out quickly that it does not work for a company like Edgeryders, small and new and trying to make way. Reason: we agreed we would try to grow based on overdelivery. We would compensate the risk taken by clients in hiring us by being excellent value for money. This means we would be hurt by taking 10% of or budget out to pay for the commission: we need all the money to provide the service. Essentially, we are foregoing commission to invest in reputation.\xa0\nThe problem is mitigated by none of us being\xa0only\xa0a salesperson. Each person in ER gets intrigued by a project, and tries to sell it because she means to then work on it. With us, the project's\xa0champion must lead it; almost always the champion is the one closing the deal, or having worked a lot on it. So we can compensate this person by paying her a little more generously once the sale has been made. It's like an informal commission.", u'entity_id': 23247, u'annotation_id': 10214, u'tag_id': 1485, u'entity_type': u'comment'}, {u'quote': u'Most initiatives fail to generate monetary resources not because they don\u2019t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.', u'entity_id': 4195, u'annotation_id': 10213, u'tag_id': 1485, u'entity_type': u'post'}, {u'quote': u'Most initiatives fail to generate monetary resources not because they don\u2019t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.', u'entity_id': 4195, u'annotation_id': 10212, u'tag_id': 1485, u'entity_type': u'post'}, {u'quote': u'A problem in ER is turning out to be how to reward the quite difficult and not always fun activity of making the sales. Not rewarding encourages waiting around for someone to walk in with a contract; rewarding it seems quite awkward, at least before you have some hard data on what it costs to do that kind of work (accounting for all the failed pitches). How do you guys do it in Sensorica? Does your accounting award a commission to people making successful sales? How much, if I may ask?', u'entity_id': 23095, u'annotation_id': 10211, u'tag_id': 1485, u'entity_type': u'comment'}, {u'quote': u'I use this image to emphasise the unsanitary conditions of the site, and how you become desensitised to them.', u'entity_id': 536, u'annotation_id': 10216, u'tag_id': 1486, u'entity_type': u'post'}, {u'quote': u'This is exactly the kind of scenario that motivates our work! To get there it seems we may need to move beyond a manual protocol to automating the production at a small scale though - as you mention, even professional underground organic chemists need a broader base of skill to express and purify proteins.', u'entity_id': 22018, u'annotation_id': 10234, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'We did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work.\nIt will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science/engineering\xa0work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next steps.', u'entity_id': 10742, u'annotation_id': 10233, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'@Noemi you\'ve raised an important point. " How do these \'larger audience\'\xa0responds\xa0to new formats? What constitutes reaching results for you? More awareness?\xa0or more active behavior across the different community groups?"', u'entity_id': 33824, u'annotation_id': 10232, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u"I remember talking with Celine in Bxl\xa0about the perks and not of a flat group organising. The hardest part I'm experiencing is with growing\xa0- if you have a small team starting up people are more than willing to do everything and teach themselves what they don't usually do in order to make it work. When numbers are in,\xa0it\xa0takes a conscious effort just to establish processes, or make norms more explicit\xa0i.e. double check understanding of the task at hand; make sure there is at least someone committed to the task; reinforcing that it's OK to ask for help; to fail etc.", u'entity_id': 15147, u'annotation_id': 10231, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 526, u'annotation_id': 10230, u'tag_id': 1487, u'entity_type': u'post'}, {u'quote': u'The "technology of participation" (the town hall meeting) is non-scalable. This means (a) every participant\xa0will spend most of her\xa0time being talked to and (b) people will need to keep any intervention short. This means there is no time to explore issues and scenarios. This is why I like so much online forums like Edgeryders: you can participate in your own time (when you are off work, when your children are asleep...); take time to make your case; and no one is forced to be reading anyone else. We\xa0choose\xa0to engage with contributions we find interesting.', u'entity_id': 30886, u'annotation_id': 10229, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'So when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii\u2019s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?', u'entity_id': 783, u'annotation_id': 10228, u'tag_id': 1487, u'entity_type': u'post'}, {u'quote': u'So the problem of scalability. We are seeing in our City and in Edgeryders, a lot of interesting care projects, community driven, but the idea is that the role for Government is to guarantee the scalability.\nWhat is the scalability?\nIn my opinion the scalability could be possible only if these new solutions, new approaches became part of an open policy making process.\nSo, in our case, the Local Administration has to became an observator, a facilitator of these initiatives, helping them to evaluate their own effectiveness and impact.\nIn our experiences we\u2019re observing many interesting care projects that are developed by communities, using new approaches to care, involving new actors (makers, hackers..)\nThese experiences are helping us to change also our services directly, to manage our services in new ways, trying to recompose the fragmented network of Care.\nI think that Government could be not an obstacle, or a part of the problem, risk that @WinniePoncelet reported, but \xa0(hopefully!!) a part of the solution: if tha PA can change its perspective and tries \xa0not to be THE actor, the only care provider really allowed to do something, but one of the actors.\nAlso, maybe, to guarantee not to fall to a neoliberalism way to solve problems..\n\xa0\nBut in which role?\nWe\u2019are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.\n\xa0\nBut it\u2019s not simple, and of course we\u2019re talking in general.\n\xa0\nWe want to open a challenge about this topic because we would like to stimulate a debate and also find concrete examples about the role that in each project could/should be done by a Public Administration (in particular Municipalities).\nWe\u2018ll share also some stories of our administration that in our opinion are going in this direction, to rethink traditional services in the new context of Care.\nThis conversation could maybe became also a way to create a path for discussing how civil servants could continue to believe to do a \u201creal work\u201d and not just a prescribed, traditional work, @PhilippeDrouillon.\nWhat do you think?', u'entity_id': 27810, u'annotation_id': 10227, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'I explain her how local initiatives are bending the system like the open insulin, chemotherapy in Romania or ways that people are hacking neuroprosthetis. Even if she find them great initiative she is scared that it will not be scalable, for her if the government doesn\u2019t follow, nothing will change on the long term. I ask her why even within this idea people are rather trying to find solutions themselves then going in the street and pressuring the government. It makes sense, she says, you have an illusion doing something more meaningful while starting a project, then putting pressure on a government where the reward will (maybe) be given after many years. Instant gratification is much more popular, and with bureaucratic complexification people are less temped to get into a long battle with the government.', u'entity_id': 726, u'annotation_id': 10226, u'tag_id': 1487, u'entity_type': u'post'}, {u'quote': u"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?", u'entity_id': 23803, u'annotation_id': 10225, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u"2) because of the 'amplification' factor - you put a lot of energy in connecting different initiatives and projects and that is what we need to create general and global change", u'entity_id': 24568, u'annotation_id': 10224, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'If you want to upscale cost effectively you may have to look outside of the traditional materials selections. Something that is durable and available at large scale is Tyvek. I have an outer layer for a sleeping bag to make it rainproof which I suspect is of very similar material.', u'entity_id': 13409, u'annotation_id': 10223, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'In the language we use here in Edgeryders, you are working on a community and documentation for it to operate on common knowledge. There are also opencare\'s main elements. This is the community equivalent of what venture capitalists call "scaling". You extend your reach, but without large money investment and unwieldy hierarchies.', u'entity_id': 18433, u'annotation_id': 10222, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'That is where the Open Value Network model (OVN) comes in. An OVN is built around a core open source community, preserving its nature, and adds layers of governance, infrastructure and methodologies in order to make large scale, open innovation networks as predictable and accountable as traditional organizations, such as coops or limited liability corporations. In an OVN, contributions to a process, be it tangible items such as time and money or intangibles such as social capital, are recorded and whatever benefit is derived from this process is proportionally divided and distributed back to contributors. This makes open networks sustainable, by allowing the implementation of capturing and redistribution mechanisms. Networks have yet to gain public recognition, legitimacy and legality, but the jury is out already, the OVN model makes open networks fully capable socioeconomic agents.', u'entity_id': 538, u'annotation_id': 10221, u'tag_id': 1487, u'entity_type': u'post'}, {u'quote': u'not scaling as a solution to survivability!', u'entity_id': 19056, u'annotation_id': 10220, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19200, u'annotation_id': 10219, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u"More power to you, @maymay . This is a very well-thought through service. What I love most is your response team concept: it works even at the level of, say, 10 friends that live in a 2 km radius from each other. Then, like the best networks, it can be\xa0scale-free:\xa0suppose I am using Buoy here in Brussels, I have my little response team etc. Next up, I\xa0visit my friend in Milano; suddenly I am detached from my response team, but if my friend is also using Buoy, she and I can be on each other's response team. Also, she can ask her own response team to opt in in my own, and viceversa I will be part of theirs. Voil\xe0: everyone in my friend's response team now has skeletal Buoy coverage should they ever come to Brussels \u2013 and of course I can ask my response team to add them, too. The scale-freedom there is that my friend and I become hubs, stringing together my local network in Brussels and hers in Milano. I can't emphasize how powerful this is: Buoy is viable at a small scale.", u'entity_id': 19153, u'annotation_id': 10218, u'tag_id': 1487, u'entity_type': u'comment'}, {u'quote': u'Scalability of public services: How to build/rethink provision of public services so that they can accommodate changes in the number of people to serve? Many of the participants complained about the lack of resources to provide education or training for newcomers. Others mentioned the provision of health and social care services, especially psychological support for the traumatised. I heard a lot of calling for more resources to be put into existing services, but little examination of how existing services are performing and even less awareness about more effective, flexible and cost-efficient approaches. Are we sure that throwing money onto more of the same will result in better outcomes? \xa0Sugata Mitra\u2019s work on Minimally Invasive Education, Miguel Chavez\u2019s experienced from\xa0building Makerspaces in Favelas, Freifunk and many others offer alternative approaches with promising results. The political will, and practical ability, to welcome and accommodate newcomers depends on it. In this recent talk, I present a proposal for how we can break out of the zero-sum thinking in the provision of care services as an antidote to rising social tensions between social groups.', u'entity_id': 5234, u'annotation_id': 10217, u'tag_id': 1487, u'entity_type': u'post'}, {u'quote': u'Then, like the best networks, it can be\xa0scale-free:\xa0suppose I am using', u'entity_id': 19153, u'annotation_id': 10235, u'tag_id': 1488, u'entity_type': u'comment'}, {u'quote': u'It\u2019s about developing the habit of documentation - so valid because it enables more groups to work on it. We lack the scalability - we cant involve new groups since it\u2019s going to be very bumpy.', u'entity_id': 38856, u'annotation_id': 11876, u'tag_id': 1911, u'entity_type': u'post'}, {u'quote': u"a late welcome from my side. It's amazing to read about what you guys are doing. wanted to know more from you specially about applying the sociocracy model, what challenges did your group face, how do you think this can work within larger groups.I am interested in knowing more about your governance model in practice, I am trying to apply sociocracy with my group in Egypt, mainly as a governance model we are not living together ( till now )", u'entity_id': 38255, u'annotation_id': 11716, u'tag_id': 1911, u'entity_type': u'comment'}, {u'quote': u"probably the difference between scaling and monopolizing markets is one of the criteria here. These startups lost the reasonable idea of scale and infringed territories. Hotels and taxi corporation will protect their share and lobby against these companies, which doesn't need to be good in results. But these battles amplified processes in the urban spaces which could have been happening more quietly before, and that's good. And made people think about sharing and new ways of the economy. Built trust.", u'entity_id': 19048, u'annotation_id': 10236, u'tag_id': 1489, u'entity_type': u'comment'}, {u'quote': u'i am the founder of social initiative \xabSchool in Hospital\xbb The aim of this initiative is to establish a structure, bringing together volunteer teachers, whose aim is to enable young patients hospitalized for a long period to continue their education', u'entity_id': 35574, u'annotation_id': 11688, u'tag_id': 1901, u'entity_type': u'post'}, {u'quote': u'While continuing to work with clothes, I now focus on providing school items for children and the campaign has shifted focus. From just catering for refugees, we also provide care for native homeless people. Through a Facebook page https://www.facebook.com/groups/519478964902645/, we are trying to organize volunteers who adopt the schooling needs/items of children in need. These needs may be covered through a donation of items or money, and this is open to everyone. So far, the stock gathered so far through donations, is enough for about 250 kids. In parallel, I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.', u'entity_id': 737, u'annotation_id': 10237, u'tag_id': 1490, u'entity_type': u'post'}, {u'quote': u'Whoa, hurray for @thomasmboa! I really enjoyed reading your post and it is amazing that just 3 weeks ago you were writing about a science shop and a lab, and now you are setting up the lab! Do you intend to make OpenInsulin the core, priority project of the lab?', u'entity_id': 38881, u'annotation_id': 11855, u'tag_id': 1931, u'entity_type': u'comment'}, {u'quote': u'There are not many fablabs, makerspaces or \u2018protofablabs\u2019 in Africa. Some of them are promoted by personal efforts, association or companies. The Woelab in Togo is well known and has success. In Cameroon there is the fablab Ongola Lab, supported by Orange and Agence Universitaire de la Francophonie. But communities seem not deeply involved due to their perception of these spaces. That is why the science shop model has a lot of potential to change the African conception of fablab, rather than replicate the western model.', u'entity_id': 37182, u'annotation_id': 11824, u'tag_id': 1931, u'entity_type': u'post'}, {u'quote': u'All these reasons explain why I took the decision to do my research in Open Science and particularly DIY ; technology is a good way for communities to ensure themselves their own local development. That is why in December I will launch inside my community, one science shop combined with a lab, for the rapprochement science-society.', u'entity_id': 37591, u'annotation_id': 11821, u'tag_id': 1931, u'entity_type': u'comment'}, {u'quote': u'Hi @Michel, hope 2017 is looking up for you!\n\nI missed this story, thank you for sharing it. The only thing I knew about dandelion tea is that it reduces inflammation..\xa0\n\nIs anyone of you or friends participating in actual research\xa0about this, or at least be under some medical/scientific supervision? I remember @Ivan_Ezeigbo, also on edgeryders, is involved in systematically studying effects of a medicinal plant for another medical affection.. i thought that was a smart way of looking for valid cure.', u'entity_id': 6684, u'annotation_id': 13024, u'tag_id': 1492, u'entity_type': u'comment'}, {u'quote': u'Hi @Michel, I\'ve harvested dandelion root to make a coffee-like drink before, and eaten the leaves and flowers. They\'re said to be good for the liver and in the past it was drunk by farmers, here in Ireland, to help maintain energy during in the winter months. I have no research to back these claims so I avoid using language stating it as fact. In Ireland we call them "wet-the-beds" which may indicate that they have diuretic properties:) They grow everywhere here, but sadly many gardeners see them as weeds and spray them with glyphosates.\nIf dandelion roots were a "cancer cure" that would be great, but I don\'t think the claim is valid without links to clear research. If that research is ongoing that\'s excellent, I\'m excited to hear more.', u'entity_id': 20554, u'annotation_id': 10240, u'tag_id': 1492, u'entity_type': u'comment'}, {u'quote': u"However, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )", u'entity_id': 10261, u'annotation_id': 10246, u'tag_id': 1493, u'entity_type': u'comment'}, {u'quote': u'Can we design interventions offer workarounds to the obstacles these intiatives, and the indivuals they attempt to support (caregivers and care recipients)? What forms could these interventions take in order to unlock more care in the different situations (artefacts, communication, services, processes, upskilling, administrative and legal hacks, policy changes and or something else? Here I think the ingenuity and very particular skillset of Costantino, Zoe and others in the weMake constellation could make a very important contribution.', u'entity_id': 5479, u'annotation_id': 10245, u'tag_id': 1493, u'entity_type': u'post'}, {u'quote': u'he 3-day meeting is part conference and part hands-on. We\'re in the\xa0Innovation in open science\xa0project team and we\'ll:\n"Explore\xa0hacker/maker space projects in digital health and the environment. \xa0Imagine a gathering where we will tackle the theme of the Assembly by making something together in a state-of-the-art maker space.\xa0 Luping Xu and Francois Grey, with the help of esteemed leaders in the maker world such as David Li and Eric Pan, will guide participants in a brainstorming session to build software or make objects in a space with equipment such as 3-D printers, sewing machines with conductive thread, microcontrollers, sensors, the works! "', u'entity_id': 5491, u'annotation_id': 10244, u'tag_id': 1493, u'entity_type': u'post'}, {u'quote': u'he works! "', u'entity_id': 5491, u'annotation_id': 10243, u'tag_id': 1493, u'entity_type': u'post'}, {u'quote': u'augment them with state-of-the-art maker technology (3D printing, laser cutting, biohacking\u2026)\ncombine everything we learn into the design and prototype of next generation community driven care services.', u'entity_id': 5510, u'annotation_id': 10242, u'tag_id': 1493, u'entity_type': u'post'}, {u'quote': u'What if we could come up with a system that combines the access to modern science and technology of state- and private sector-provided care to the low overhead and human touch of community-provided care?', u'entity_id': 5510, u'annotation_id': 10241, u'tag_id': 1493, u'entity_type': u'post'}, {u'quote': u'Sharing this:the ibreastexam, low-cost point-of-care breast health test\xa0for use by community workers in low resource settings. This device is designed to address the rising incidence of breast cancer in developing countries where women have limited or no access to breast cancer screening services.', u'entity_id': 803, u'annotation_id': 10253, u'tag_id': 1495, u'entity_type': u'post'}, {u'quote': u"There are a lot of people there who have a lot of different personal mental health issues. Its probably a better use of your time to focus on this 'secondary' trauma, rather than working with people who have experienced it.", u'entity_id': 27318, u'annotation_id': 10254, u'tag_id': 1496, u'entity_type': u'comment'}, {u'quote': u"I would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? 'Help with 'secondary' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal\xa0 conversation? Should we provide time for individual help too?How many people are involved?", u'entity_id': 26955, u'annotation_id': 10255, u'tag_id': 1496, u'entity_type': u'comment'}, {u'quote': u'Full self-acceptance is very hard. Often we need the support of others to be able to see our "shadow" (in the Jungian sense).\nTo me, sadness, unproductivity and inefficiency are symptoms of not having found satisfying connections in life. But the answer to that is often not "trying harder" to find something. It might more often be letting go of images of oneself that one has taken on from other people. Finding oneself is easy to say, and really hard to do. Let go, be open, listen, accept help...', u'entity_id': 29954, u'annotation_id': 10257, u'tag_id': 1498, u'entity_type': u'comment'}, {u'quote': u"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles,\xa0even skill up in a process that difficult.\xa0\n\nThere are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder,\xa0said something similar about \xa0how conversation in which neither party is an expert can be lifechanging.\n\nI'm curious about\xa0the\xa0group which seems more or less open - can anyone who reports\xa0feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentanxiety about asking for and offering care\n  \n    \n    Edit\n    Delete\n  \nNo Commentdepression\n  \n    \n    Edit\n    Delete\n  \nNo Commentsadness\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 10263, u'annotation_id': 13025, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u"Hey Edgeryders,\xa0\nI'm developing a course to become an energetic master and conscious creator. It's a self care course to become aware of how beliefs and perceptation relate to how you feel. Here's a first video I shot last week.\xa0\n\n\n\n\nConscious creator from Ewoud Venema on Vimeo.\nYou can find a more elaborate on my Academy where I'll continue to share these courses (probably). I hope you find it inspiring and clarifying. If you like them, you can subscribe to my newletter or follow me on vimeo.\xa0\nLet me know how you feel!", u'entity_id': 876, u'annotation_id': 10281, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u"I'm super interested in this session! Mainly because I work in my university's mental health office (added a link to more info on this at the bottom). What I'm curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.\xa0\n\nI think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?\n\n\nhttps://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink", u'entity_id': 19695, u'annotation_id': 10280, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10279, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u"I don\u2019t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of \u2018self care\u2019: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, \u2026 It is long known that helping on this \u2018equal\u2019 level, is often more effective than any method or technique. It is also known that the relationship between \u2018therapist\u2019 and \u2018patient\u2019 is a major factor when it comes to healing. If we combine both, \u2018helping expertise\u2019 and \u2018being equal\u2019, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes \u2018us\u2019 helpers and \u2018them\u2019 traumatized people equal human beings, fellow human beings. It restores humanity.", u'entity_id': 795, u'annotation_id': 10278, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'I worked for several years around the project of self-care.', u'entity_id': 541, u'annotation_id': 10277, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'The answer is Cultivating Care through Community!\nThis is where my work comes in. As a student working on the school\u2019s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.', u'entity_id': 724, u'annotation_id': 10276, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'I fully recognize myself -maybe a year back or so - in this picture. The advice I\'ve been given is to learn first\xa0 to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the "professional" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can\'t do it alone, and shouldn\'t. So the challenge is finding those like minded communities which Alberto mentions\xa0and dreaming up\xa0solutions to make it better for more people. If you know of good projects do recommend, I\'m very interested.\nThis talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it already:', u'entity_id': 16075, u'annotation_id': 10275, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u"As the years went by, I began to understand that it was not the fact that Tina loved ticking off to-do-lists that\xa0 seemed so strange to me. It was the logic of efficiency, that I began to see everywhere. Peers trying to \u201eget it all right\u201c, to \u201eavoid failing\u201c. To master their own life as it was some kind of stress test. And to always be ready for the next job interview, a smooth and pleasing CV at hand.\nI was and I am a part of that. And it strikes me that this kind of neoliberal thinking of \u201eyour life (and your success/failure) is your responsibility\u201c leads us sometimes to very harsh assumptions about ourselves and our peers.\nI can now see all of that in a broader socio-economic context of destabilized markets and societies. We are all, in a way, facing much more uncertain futures than our parents did (while it is extremely difficult to get a full understanding of how this is just a perceived thing or really the case).\nAgainst this backdrop, the topic of mental and emotional resilience seems really a thing we should put our minds to. What does \u201ereal\u201c self-care mean when we are all trained to function? When spiritual practices like yoga and meditation are already a part of improving ourselves, being a good self-entrepreneur who, after a good yoga-session, can function even better, work even longer hours?\xa0\nI think sharing our vulerabilities and insecurities around failing, missing out and not wanting anymore is crucial at this point. Although there are already some great projects bringing these issues into awareness it seems that for a majority of people the stigma around for example mental illness, burnout etc. is still too big to cope with on their own.\nHow can we turn sadness, unproductivity and inefficiency into an accepted part of life and how can we help people to cope with expectations they can't and don't want to meet?", u'entity_id': 666, u'annotation_id': 10274, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'The need to understand young people\u2019s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or \u201ccare for the living\u201d. In other words, despite social workers and counsellors preaching the value of \u201ccare chains\u201d, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.', u'entity_id': 548, u'annotation_id': 10273, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'What seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.', u'entity_id': 15996, u'annotation_id': 10272, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u"@Village-Psy it's a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we'll have the chance to care about us better and having fun as you suggest.", u'entity_id': 24150, u'annotation_id': 10271, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u"Can't disagree with what you write @Village-Psy and the solution found in Calais seems to be training for self care and making your mind catch up with the program somehow. Because I'm sure anyone rational\xa0can agree self care is important, but managing emotions and urges is something for another side of your brain..", u'entity_id': 22795, u'annotation_id': 10270, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22549, u'annotation_id': 10269, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22549, u'annotation_id': 10268, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u"@Village-Psy maybe you can help us understand why self care is so expensive for one to offer it to herself. Have you read about the 24/7 caregivers who simply can't switch off? If you have something to offer to that discussion and would be willing to head over there\xa0it would be very well received.", u'entity_id': 21911, u'annotation_id': 10267, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u"Artists are often 'self-healers', they are their own therapists.", u'entity_id': 31148, u'annotation_id': 10266, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'disease', u'entity_id': 521, u'annotation_id': 10265, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'But as the era of individualised medicine gathers steam, this is something that all forms of healthcare are going to have to grapple with.', u'entity_id': 15329, u'annotation_id': 10264, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'autonomy, health and interdependency.', u'entity_id': 19249, u'annotation_id': 10263, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'I had a conversation with Amir Hannan, a GP working in the UK, about how\xa0 chronic care requires patients to self-manage for good health outcomes (writeup coming soon). Over 15 years he has built a practice based website to encourage an support his patents gain a better understanding of their health to better enable automy and self-care. You can see the site itself here: www.htmc.co.uk (especially the "Common Problems you can solve yourself section - see menu on the left)"...', u'entity_id': 8632, u'annotation_id': 10262, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'The self care training was mostly around sharing best practice. Asking groups to share ideas around how they unwind, stress reduction, how they notice stress in themselves and others.', u'entity_id': 16022, u'annotation_id': 10261, u'tag_id': 1499, u'entity_type': u'comment'}, {u'quote': u'er. Has not only to do with caring about other people and also for yourself. Is it important to care for yourself first or the other way around? It\u2019s a challenge to care for huge number of people at once', u'entity_id': 494, u'annotation_id': 10260, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'Important concepts for care (therefore to include into storytelling practice):\n\n\n\n Communion\n\n\n\n\n Compassion\n\n\n\n\n Self-care\n\n\n\n\n Awareness\n\n\n\n\n Why you help and whether you are more helped yourself.', u'entity_id': 5405, u'annotation_id': 10259, u'tag_id': 1499, u'entity_type': u'post'}, {u'quote': u'A minimal self-diagnosis kit, that can be extended by modules. The basic version would be perhaps something like "where there is no doc/dentist" in an adapted audiobook format. This would not require literacy and could be provided via extremely cheap mp3 player (sell for <1 USD) + memory card (2-3 USD for library size) + minimal solar charger to trickle charge the battery (1-5 USD).\n\nNext step up would be a recording function, a sampling kit, and a photo kit. Next step from that would be a full smartphone with some diagnostic hardware. The smartphone would be important to catch many of the cognitive bias pitfalls associated with self-diagnosis*. But both these could be intermittently provided via a long range drone delivery:', u'entity_id': 16393, u'annotation_id': 13026, u'tag_id': 2192, u'entity_type': u'comment'}, {u'quote': u'If you contrast that with the wikipedia entry on self diagnosis, which say things like:\n"One of the greatest dangers of self diagnosis in psychological syndromes, is that you may miss a medical disease that masquerades as a psychiatric syndrome. Self-diagnosis also undermines the role of the doctor-which is not the best way to start the relationship. Then there is the fact that we can know and see ourselves, but sometimes, we need a mirror to see ourselves more clearly. By self-diagnosing, you may be missing something that you cannot see. Another danger of self diagnosis is that you may think that there is more wrong with you than there actually is. Self-diagnosis is also a problem when you are in a state of denial about your symptoms."\nI have to say it seems like there is something rotten in the state of Denmark. How much research money gets spent on improving methods of self diagnonsis exactly?', u'entity_id': 21290, u'annotation_id': 10286, u'tag_id': 2192, u'entity_type': u'comment'}, {u'quote': u"Easier interactions through\xa0the internet,\xa0powerful search engines,\xa0a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don't\xa0always provide\xa0correct information, these factors also\xa0lead people to challenge the authority in terms of knowledge\xa0of the practitioner in the classical doctor's office. I\xa0think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare.", u'entity_id': 18779, u'annotation_id': 10285, u'tag_id': 2192, u'entity_type': u'comment'}, {u'quote': u'In Product Design, we are constantly brought to question our surroundings, our decisions, and most importantly, ourselves. There has been a crisis point in almost any project where this turned into seriously doubting myself and hating all the work I had done. Sometimes, it led to absolute public meltdowns. To me it is a strange and uncomfortable feeling to share such intimate moments with people I work with.', u'entity_id': 680, u'annotation_id': 10287, u'tag_id': 1501, u'entity_type': u'post'}, {u'quote': u"I & a friend have put some thought into care & self driving cars here (creative commons): https://cocreate.localmotors.com/RaMansell/healthy-movement/\nI also have a couple of ideas regarding hygiene (shower mods), and had worked on a prototype of for electrical stimulation of muscle cells grown in a dish.\nI'd love to discuss those things with someone who has a little more care background than I do (materials science).", u'entity_id': 9902, u'annotation_id': 10288, u'tag_id': 1502, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 727, u'annotation_id': 10289, u'tag_id': 1503, u'entity_type': u'post'}, {u'quote': u'Over the last years I\'ve been organizing several series of meetings about personal transformation and\xa0living from the heart\xa0(for instance;\xa0Vrij met Geld/ Free with Money). Also I\'ve worked and lived with changemakers communities, for instance at the Synergyhub in Rotterdam and several ecovillages/ ecocenter\'s, as well as intensely researched the topic of enlightenment and spiritual growth and the physical world. Over the last months I\'ve started writing a book: Step into creation - guidebook for a co-creative universe. Recently I\'ve started a platform "Creating new realities". One of the important lessons I learned is: "you can\'t co-create if you don\'t resonate" and "a little shift in perspective" is often all you need to get back into flow. When I stop resisting, things happen. "When I let go, I know". Behind the known is a infinite field of potential. There lies true excitement. There is infinite inspiration at our disposal. And at the same time, it\'s nice to play with the physical. So to make the world a reflection of our spiritual growth. To let both go hand in hand. To grow and deepen the quality of relationships and communities. To develop the society and create things that represent our love for the world and the mystery of creation. These are some of my most important reflections over my experiences. That\'s what I\'d love to inspire and catalyze! To create realities that are infinitely inspiring and joyful.', u'entity_id': 846, u'annotation_id': 10292, u'tag_id': 1504, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10291, u'tag_id': 1504, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 10290, u'tag_id': 1504, u'entity_type': u'post'}, {u'quote': u'I am trying to interest the EC\'s Policy Innovation Unit in the idea of a "self-organized camp", based on the intuition by @Alex_Levene \u2013 and now this confirmation by @Tomma and others.\xa0\n\nBut, I am not holding my breath. I will keep you guys posted.', u'entity_id': 22641, u'annotation_id': 13030, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'@Alex_Levene good to learn about the work of HelpRefugees, I have not come across them so far but will look for more information and will try to contact their team in Greece to see what they are doing. I am very much in favour of refugee self-organisation or projects involving the solidarity movement and refugees in horizontal relationships (althoug I am aware that this is not always easy to achieve) but I can see and understand that some of the more formal orgs are also being organised in a way that allows quite a lof of self-organisation or self-management in practice and are doing a lot of great work on the ground. I have seen this already with some organisations working in the camps around Greece.', u'entity_id': 19594, u'annotation_id': 13029, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'Great stuff, @ChristinSa !\xa0I love the "R2R" concept. With @Alex_Levene we had already appreciated the self-organising skillls demonstrated by refugees in the case of The Jungle in Calais (I highly recommend you read his beautiful posts: one and two).', u'entity_id': 9184, u'annotation_id': 13028, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'As I read about the volunteers life in The Jungle, I am brought back to an impression I have had all through this opencare project. The impression is this: "the economy", "society", the world we know is only paper thin. Behind the surface of\xa0carbonated drinks and targeted advertising and employment figures\xa0and pre-election rallies, I glimpse self-organisation reaching out for ways to cater to our needs. It seems like it percolates through the crack of society, colonizing immediately any area that "the economy" retreats from. This could be why there are so many great stories from Greece coming through; Helliniko and\xa0@OrangeHouse , @Aravella_Salonikidou and her strange "not some social space", @MAZI , @Tree_of_Life , @To-Steki , @Jenny_Gkiougki , @Noesi ... Greece has suffered more than most countries, and yet there is so much resilience.', u'entity_id': 21551, u'annotation_id': 13027, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'For the past 3 weeks I have been working as a volunteer through the central warehouse, L\u2019Auberge des migrants.\n\nL\u2019Auberge acts as the central aid and food distribution services for the camps across Northern France, including Calais, Dunkirk and a number of smaller camps around the area.\n\nL\u2019Auberge exists solely on donations, providing daily hot food deliveries, daily dry food deliveries to allow residents to cook for themselves, clothing drops, and since my arrival a mobile distribution service that goes from shelter to shelter, assessing individual and community needs and providing aid in the form of blankets, sleeping bags, cooking equipment, lights and a number of other personal items.\n\nAll of these services are coordinated by long to medium term volunteers, who spend their own money and time to care for the people on camp without receiving any direct pay. Sometimes fundraised money is spent to provide accommodation and travel expenses to volunteers but a large majority of people live out here entirely on the own funds.\n\nThe warehouse was initially set up by a French charity but is now run and \u2018staffed\u2019 by a UK charity HelpRefugees [http://www.helprefugees.org.uk/what-we-do/], who bring in funding and support from around the EU to help provide humanitarian services.\n\nhttp://www.aljazeera.com/indepth/features/2016/03/burying-refugees-die-calais-jungle-160329071028796.html', u'entity_id': 39328, u'annotation_id': 11631, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'Alongside the humanitarian and social aid there are library and reading services [http://www.calaidipedia.co.uk/jungle-books-library], theatre and arts activities [http://goodchance.org.uk/], community kitchens [https://www.facebook.com/OneSpiritAshramKitchen/][https://www.facebook.com/The-Belgian-Kitchen-1736739086546935/], hot food distribution, dry food goods distribution and daily clothing distributions provided from a central warehouse [http://www.laubergedesmigrants.fr/], amongst many others [http://time.com/4233206/calais-jungle-shops/].', u'entity_id': 39328, u'annotation_id': 11628, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'As a result, no single government or NGO organisation has responsibility for the activities and structures on camp. Everything that has grown up has happened through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK', u'entity_id': 39328, u'annotation_id': 11630, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'Increasingly we are seeing aid, and charities from further afield in Europe coming to Calais to help, creating a multi-national series of solutions that have grown up without any direct hierarchy or guidance.', u'entity_id': 39328, u'annotation_id': 11627, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'As a result, no single government or NGO organisation has responsibility for the activities and structures on camp. Everything that has grown up has happened through self-organisation, communication and collaboration between new and existing charities both French-based and in the UK.', u'entity_id': 39328, u'annotation_id': 11626, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'In Syria we have an \u2018islamic solidarity\u2019 in society that creates a kind of health system without organization, like you have to give a part of your money to the poor, you have social care system that is organized by the people itself. If you haven\u2019t fastened for one day, you have to give food to 64 people. Every doctor works one day a week for free. That is how we can survive under a dictatorship. \xa0We are already prepared for any kind of chaos, it is made for any kind of situation and is part of our cultural heritage.', u'entity_id': 790, u'annotation_id': 10298, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'1) because of the involvement of refugees themselves - it is so empowering to be able to do something to improve your life, to have work, to have a life, an income and to be part of a community', u'entity_id': 24568, u'annotation_id': 10297, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'I am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.', u'entity_id': 19544, u'annotation_id': 10296, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'In all these places, it was very encouraging to see what can be achieved when determination of refugees and solidarity from activists/volunteers is combined in a self-organised and impulsive way. In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad.', u'entity_id': 15996, u'annotation_id': 10295, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'This cooperative project is called \u2018Refugees to Refugees (R2R) Solidarity Call Center\u2019 and it is a project run by refugees for fellow refugees. Its objective is to provide information and advice for various kinds of issues related to either transit, temporary stay or settlement of refugees in Thessaloniki, but also in wider Greece. At the same time, through its services, it hopes to create linkages between refugee communities and the wider solidarity movement, in order to break the exclusion and isolation that refugees are feeling, as a result of being crammed in concentration camps. Strong solidarity networks already exist within the cities, in which teams of lawyers, doctors, translators and networks of families offering hospitality in their homes, are offering voluntary support and practical solutions, whenever needed.', u'entity_id': 792, u'annotation_id': 10294, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 10293, u'tag_id': 1505, u'entity_type': u'post'}, {u'quote': u'All I can say is that the whole opencare thing is really not relying on government. The stories you read here are all stories of self-sufficiency somehow.', u'entity_id': 13915, u'annotation_id': 10299, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u"And yet you hear stories like this school built by a Nigerian: http://www.bbc.com/news/world-europe-35714129 It's probably fragile and temporary though (if still there), but good example.", u'entity_id': 39336, u'annotation_id': 11664, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'This is a great story! What it seems to have to teach is this: refugee camps could sprout many more and better services if people were allowed to provide for each other. Score one for self organization.', u'entity_id': 39333, u'annotation_id': 11649, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u"It's very much a case that the residents are very active on site.", u'entity_id': 39334, u'annotation_id': 11645, u'tag_id': 1505, u'entity_type': u'comment'}, {u'quote': u'power of its insistence on self-referral: this means that participants are drawn from a range of social and economic backgrounds, rather than exclusively from a target group identified by its deprivation. This means that participation at the centre provides an alternative to - rather than a reinforcement of - a negative social identification.', u'entity_id': 493, u'annotation_id': 10301, u'tag_id': 1506, u'entity_type': u'post'}, {u'quote': u'1) self selection: individuals get involved in something because they want to, and contribute because they want to', u'entity_id': 541, u'annotation_id': 10302, u'tag_id': 1507, u'entity_type': u'post'}, {u'quote': u'I am trying to interest the EC\'s Policy Innovation Unit in the idea of a "self-organized camp", based on the intuition by @Alex_Levene \u2013 and now this confirmation by @Tomma and others.\xa0\n\nBut, I am not holding my breath. I will keep you guys posted.', u'entity_id': 22641, u'annotation_id': 13031, u'tag_id': 1508, u'entity_type': u'comment'}, {u'quote': u"Hi Dennis,\nWe see this same problem with many of the short term\xa0volunteers in Calais.\nA lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to\xa0help\xa0of their agency;\xa0their freedom to act normally.\nWhen i first started working on the camp\xa0i fell into the same trap. I was helping to build shelters, but i was also a little scared for myself:\xa0my safety, my equipment, 'getting the job done correctly'. It was only by standing back from the action and just talking to some of the camp residents\xa0who were trying to help us that i found out more about them. Many of them had been engineers or builders before they embarked on their journey to a safer life.\nI realised that these people were more qualified than i was, had more reason to make sure the shelter was built well and could be trusted with our equipment because it was of great value to them that we had brought it to the camp.\nI had to turn off the switch in my head that was about 'me' and truely be there for them. But it could only be done by firstly opening a dialogue, then through mutual understanding and cooperation.\nAs the day went on the residents who were working with us drifted away (to do tasks like cooking, eating, prayer, preparation for the nighttime, talking to family at home/friends in other countries) and we found ourselves continuing the work as our orginal team. That was the moment that we really started to help them. We could treat this task as a job, we could committ 100% of\xa0our time and resources to finishing the job quickly, because that's why we had come out\xa0there. As a result 16 people had a drier, warmer place to sleep that night.\nBut we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people.\nPeople first, mission second.", u'entity_id': 20040, u'annotation_id': 10310, u'tag_id': 1508, u'entity_type': u'comment'}, {u'quote': u'thanks for your thoughts! The idea of an "interactive camp" whithout\xa0the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different "problems" from each other but to organize the camp differently from the very first:', u'entity_id': 26018, u'annotation_id': 10309, u'tag_id': 1508, u'entity_type': u'comment'}, {u'quote': u"This is really nice to hear. Was just talking with 2 of my Syrian friends and they said it's very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.", u'entity_id': 31536, u'annotation_id': 10304, u'tag_id': 1508, u'entity_type': u'comment'}, {u'quote': u'. We have been fantasizing about "emergent" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.', u'entity_id': 16195, u'annotation_id': 10303, u'tag_id': 1508, u'entity_type': u'comment'}, {u'quote': u'Vision\n\n\xa0A holistic, integral, evolutionary, self-directed and self-integrated community (civilization).\n\nPurpose\n\nTo continuously and consciously evolve toward our highest potential through resilient adaptation to experiential existence.\n\nTo collaboratively design, develop, and implement the blueprint for an intentional need-fulfillment community where purposefully driven individuals are fulfilled in their development toward their highest potential state of human experience for themselves and all others.\n\nThe CAPE Project has a low entrance barrier for collaborators, participators, and community builders. With that said, however, there can be a substantial learning curve when it comes to acquiring a comprehensive understanding of what is actually being proposed by the Project. It is important to remember that this community proposal represents an entirely different linguistic worldview than most (if not all) other worldviews present in modern society. Fundamentally, the Community\u2019s design describes an entirely divergent way of living and of understanding reality than the many worldviews expressed among the current population of the planet. This can present a significant motivating challenge for those interested in this direction. The design specifications are dense in content and many individuals who read them for the first time feel like they are learning a new language and integrating a new worldview, which takes time and requires internal processing.First Steps and Key Features\n\nAs a first step we are going to establish a \u201cTraining and Research Network\u201d - primarily for tertiary education | higher education - to enable educators to understand and facilitate the train of thought of an integral, holistic, evolutionary, self-directed, self-integrated and self-civilization and are looking for places to establish training and cultural exchange centers. With tis comes an network of self organizing solidly co-habitational care Nuklei.\n\nAs we have to exist within a framework of formal-operational rules (orange), at best early vision-logic (green), we have to establish a set of \u201corganizational-bodies\u201d to support the idea in the best way possible.\n\nThe key features have to be adapted as part of part of a living organisation! To date, our core themes are:\n\n\n\n\nNew Learning\n\n\n\n\nCreating Creative Learning (Spaces)\n\n\n\n\n\n\n\nCommunication\n\n\n\n\nArt\n\n\nintegral News Communication\n\n\n\n\n\n\n\n\xa0Socio-Economic Development\n\n\n\n\nNew socio-economic systems that focus on resource availability;\n\n\nexperience an reserch a new way of care for each other including health care and social security aspects;\n\n\ndeveloopment of strategies for mental health and healty living environments;\n\n\n\n\n\n\n\nIntegral Leadership, integral management systems\n\n\n\n\nliving- and holonic organizations, Assessment, creating \u201cSelforganizing Open Hierarchical Order\u201d Systems, (olocracy)\n\n\ncentre attention on the evolution of human values and consciousness as the crucial factors in changing course \u2014 from a race towards degradation, polarization and disaster to a rethinking of values and priorities so as to navigate today\'s transformation in the direction of humanism, ethics and global sustainability" Ervin Laszlo\n\n\n\n\n\n\n\nSustainable Engineering and Application\n\n\n\n\nApplication of sustainable energy production;\n\n\nHigh-Tech in ecological production processes.\n\n\n\n\n\n\n\n\nThe design for the community is not yet sufficiently complete to plan its implementation. However, we presently have a \u2018scope of work\u2019, and we are in the process of converting it into a comprehensive project plan.\n\nWe are initiateing multilingual communities and living space with people who focus primarily on inner development. Where we are working on our consciousness, because the crisis in our society is a crisis of consciousness. We shift our focus inwards, develop our relationship skills and transform our social programming. There should be as few fixed guidelines as possible concerning the personality and lifestyle of the members except the common to work toward a higher level of development. There are no ideologies, no dogmatic requirements and no fixed concepts.\u201cCAPE\xa0 aims to build a social net for the members, enacts "share & care" principles and provides a framework (legal body) for cooperative economy as well as a space for inter-generational "new", action based, co-operative learning.\nCAPE should be a special place for members and learners to revive, a place to flourish, a place for young and old. Sustainable mental health is a result of continuous enthusiasm to our own development and a willingness reconstruct our beliefs.\nWe, the initiators of CAPE LearnLust & Living think that the acceleration of our lives and the deluge of controversy, often absurd and paranoid information from an ailing socio-economic structure leads to the desire of many people for contemplation, inversion and a return to ethical values that are inherent to all human beings, but in "our experienced world" increasingly seem to disappear. Sincere joy, love for everything around us, to nature, compassion for each other, time to talk, to feel and enjoy, no longer being so tense and stretched - internally driven, yet not knowing where to go.\nAutonomous and healthy life for the young and the joyful old. To create the miracle called "we", which awakens us to renewed life! To unmask the process of maturing as ripening and getting wise. Therefore, we are now tackling this \u2026\nWhat do we perceive? Today our society offers almost unlimited possibilities. This diversity can lead us humans to exhaustion, confusion and disorientation, to sensory overload, burnout! Therefore, every human being is faced with the challenge of finding answers to the following questions:\n\n\n\nWho am I really?\n\n\nWhy am I here?\n\n\nWho or what gives me meaning and footing?\n\n\nWhat is my inherent value?\n\n\nWhere do I want to go?\n\n\nOur goal is to develop as a group to the extent that we understand each other at the height of the developmental stage now possible. These levels of human development are researched and described scientifically. It does not matter at what age we come together, it\'s fun and is exciting to get to know thyself and develop. As pioneers of a new action based, co-operative learning we share our special talents and skills with those interested. We are convinced that sustainable social change in the global community depends on the quality of personal development, training and the ability to effectively and constructively communicate with others. The focus is on interaction and cooperation, shared responsibility and authority, and the improvement of critical thinking. There is no \'teacher\' in the traditional sense. Learning will be self-organizing, dynamically adjusted to needs and ideas of the "learners".\n\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentautonomy\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate', u'entity_id': 765, u'annotation_id': 13032, u'tag_id': 2195, u'entity_type': u'post'}, {u'quote': u'The beauty of it all is how easy these units are to make. First of all, the raw materials are easy to find: people don\u2019t recycle here, so the streets are littered with bottles. We show people how to make them and then ask them to both do it on their own and to teach others. We also made a how-to pdf that\u2019s up on our website and includes an easy step-by-step process.\n \n  It\u2019s free and people get immediate results!', u'entity_id': 33744, u'annotation_id': 10313, u'tag_id': 2195, u'entity_type': u'post'}, {u'quote': u'Edgeryders is an open source platform that combines online and offline moments to find through other ways than the mainstream solutions for sociatal problems. Mission is to support members to create self-sustaining projects.', u'entity_id': 541, u'annotation_id': 10312, u'tag_id': 2195, u'entity_type': u'post'}, {u'quote': u'Prinzessinnengarten, as well as other urban gardens in Germany, have been able to develop small economies around its activities. Prinzessinnengarten has been able to support 15 full-time jobs during it seasons, being financially independent through its economic activities such as horticulture, the tending of a small caf\xe9, selling its products, as well as giving training in gardening, ecology or the planning of further gardens. At the same time, it has been able to offer high quality, healthy and ecological food at affordable prices.', u'entity_id': 507, u'annotation_id': 10311, u'tag_id': 2195, u'entity_type': u'post'}, {u'quote': u'The Big Bang Schools are furthering the vision of our initial project, the \u201cSchool of Nature and Colours\u201d. This is an educational role model of creative self-management, in which pupils are taught beyond the curriculum how to learn in-depth, sing, dance, stage theatrical plays, raise funds for their school through a vegetable garden and make their activities and campaigns are known to the public using social media.', u'entity_id': 761, u'annotation_id': 10316, u'tag_id': 1510, u'entity_type': u'post'}, {u'quote': u'There is also a downside to community engagement. While community organizations have to promote themselves with success stories to get recognition, political- and financial support, the negative aspects are often less visible. You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.', u'entity_id': 507, u'annotation_id': 10315, u'tag_id': 1510, u'entity_type': u'post'}, {u'quote': u'Access Space: In Sheffield, England - another post-industrial city, similarly hit by unemployment in the early 1980s - the artist James Wallbank and friends set up what has become\xa0the UK\u2019s longest-running free internet learning centre. As\xa0described by NESTA, \u2018The centre brings together old computers and new open source software to create a radical, sustainable response to industrial decline and social dislocation.\u2019 In conversation, Wallbank has emphasised to me the importance of the social and directional role of participation at Access Space: for those who have been long-term unemployed, the change in the shape of their lives on becoming a regular participant is often huge', u'entity_id': 493, u'annotation_id': 10314, u'tag_id': 1510, u'entity_type': u'post'}, {u'quote': u"I'm not 100% sure about my interpretation and would love Deborah to give us more hints about it.\n\n\nOn a side note, I would be interested to know if you (Deborah) have already thought about the interaction of the main task: adding the data\xa0tailored to your specific situation.\n\nIn my experience, even when the committment is pretty high (meaning the tool can for instance improve the quality of your life), a system that involves a lot of data entry tends to have a short life cycle, (unless the feedback is clear and constant and meaningful).\n\nI'm very interested in approaches where for instance the system knows when is the right time to ask you for the data, or in general where the data entry becomes organic, integrated in your routine, almost happening in the background.", u'entity_id': 15751, u'annotation_id': 13034, u'tag_id': 1511, u'entity_type': u'comment'}, {u'quote': u"Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post \u2013 seems like great work, congrats!\n\nThe idea of understanding one's\xa0own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes\xa0out), or a many-to-many interaction between users. Can user A see the diary of user B? Do\xa0they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?", u'entity_id': 8578, u'annotation_id': 13033, u'tag_id': 1511, u'entity_type': u'comment'}, {u'quote': u'How can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users.', u'entity_id': 837, u'annotation_id': 10317, u'tag_id': 1511, u'entity_type': u'post'}, {u'quote': u'Perhaps you know of agricultural and / or handicrafts products from Madagascar that are interesting for export to Europe (storable, high value per weight)? I can tell you what we have found out about direct sales of food items from Nepal to Europe. Customs etc. is very doable, and revenues for farmers will be about 200% of what they get in the traditional trading system (and even that is very high for coffee because Nepali coffee is traded as a specialty \u2026 so it can be a 400-500% improvement for some "more ordinary" coffees from around the world). Let me know if you want any more infos on that.', u'entity_id': 21834, u'annotation_id': 10322, u'tag_id': 1513, u'entity_type': u'comment'}, {u'quote': u'creating sort of economy inside the temporary shelters/housing - so that the produce of the inhabitants could be sold outside, either as affordable fixes for the houses, or maybe as crafts, if higher quality materials were provided?', u'entity_id': 23782, u'annotation_id': 10321, u'tag_id': 1513, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 9599, u'annotation_id': 10320, u'tag_id': 1513, u'entity_type': u'comment'}, {u'quote': u'This is a handmade table produced by the roma community living on the outskirts of my hometown, in a rubish dump <sigh>. The table was purchased by a hip bar downtown (I\xa0think that at an auction..)\xa0and is currently under great use. Photo from Made in Pata Rat facebook page. I will see if I can get in touch with someone who can better report on this story.', u'entity_id': 21728, u'annotation_id': 10319, u'tag_id': 1513, u'entity_type': u'comment'}, {u'quote': u'I would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care\xa0priorities in a whole different light. Or the layers you mention ("opinion" "contradict" etc). But if you have an ethnographer analysing the more in-depth\xa0conversation, isn\'t that\xa0covered?\xa0@jimmytidey is involved in\xa0mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes?\xa0http://localnets.org/', u'entity_id': 33416, u'annotation_id': 10323, u'tag_id': 1514, u'entity_type': u'comment'}, {u'quote': u'Experiences that create sense of self - being in relationship with others and the world - so beautifully captured in this quote from Abiba Birhane; \u201cbeing happens in the space between the self and the world\u201d in a link shared by\xa0@markomanka;', u'entity_id': 6462, u'annotation_id': 10324, u'tag_id': 1515, u'entity_type': u'post'}, {u'quote': u'My early encounters with the Edgreryders platform, I\u2019ll be honest, have been confusing. That said there is something in this that reflects the incredible diversity of the members and their contributions. Engaging with this complexity requires a new set of skills and senses. Absorb, stumble, unravel, gather. It is at times frustrating - it\u2019s at odds with standard linear project trajectories and ways of working. So perhaps I\u2019m simply experiencing the necessary pain we all encounter as we grow the inner muscles and capacities to cope with the complexity at the edge of wicked problems. It also feels necessarily a slow process of absorption before I can begin to synthesise and produce.', u'entity_id': 6462, u'annotation_id': 10326, u'tag_id': 1516, u'entity_type': u'post'}, {u'quote': u"The article contains a few phrases I really liked and I would like to express my delight about them. I think of the \u201cCan other senses compensate for sight deficiency?\u201d problem which is asked at the beginning. Also, I think of the \u201ca technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings\u201d thing. This is such a nice, simple and healthy way of talking about the project and building it. I checked the website too and I liked the fact that it says a lot about the project and what's coming next.\xa0I would really like this to extend and I hope to hear more about this in the near future. Thanks for sharing!", u'entity_id': 7466, u'annotation_id': 10325, u'tag_id': 1516, u'entity_type': u'comment'}, {u'quote': u'An Arduino uno.\nA Ultrasonic sensor( HCSR04 ).\nA Mini breadboard.\nA 9 volt battery.\nA 9 volt battery connector.\nDC male power jack.\nA Buzzer.\nSome Jumper wire.\nAn Broken cellphone from scratch.\nA Toggle switch.\nOther tools and parts used in this project :', u'entity_id': 770, u'annotation_id': 10332, u'tag_id': 1517, u'entity_type': u'post'}, {u'quote': u'In 2014 Sara\xa0Savian\xa0and Mauro Alfieri started their journey with a \u201ctest on sensors \u201cand they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.\xa0 The intent was to explore how it can be used? How can it add value and be of use socially?\xa0 What could be built on this foundation? These discussions could change the course for many participants.', u'entity_id': 861, u'annotation_id': 10331, u'tag_id': 1517, u'entity_type': u'post'}, {u'quote': u'I also have ideas regarding more efficient or senior friendly showering (hygiene) methods, mostly foam based.\nRecently I brainstormed for a self driving car mod (https://cocreate.localmotors.com/RaMansell/healthy-movement/) that could work in rehab as well, so some ideas are still warm. I had actually proposed to make it incontinence friendly as well.', u'entity_id': 20346, u'annotation_id': 10330, u'tag_id': 1517, u'entity_type': u'comment'}, {u'quote': u'Hi, @trythis, I did some research when my children were small. There are a number of patents (probably run out now) having excellent solutions. I think the solution is probably a two piece combination:\xa0\n1 controlling unit\n2 disposable/washable sensor\nAt the time I considered a simple humidity sensor (measuring the impedance in the diaper, but its only effective for urine. What is the current state of gas detectors? A small one that could detect some compound in feces?', u'entity_id': 17399, u'annotation_id': 10329, u'tag_id': 1517, u'entity_type': u'comment'}, {u'quote': u"and I know some profs that work in an appropriate sensor field (e.g. Petra P\xf6tschke in Dresden).\nHit me if you'd like to sit down to brainstorm a little.", u'entity_id': 15017, u'annotation_id': 10328, u'tag_id': 1517, u'entity_type': u'comment'}, {u'quote': u"I'm a bit swamped now, but if anyone is interested to go through numerous\xa0existing sensor apps and see if there is something there.", u'entity_id': 7867, u'annotation_id': 10327, u'tag_id': 1517, u'entity_type': u'comment'}, {u'quote': u'An Arduino uno.\nA Ultrasonic sensor( HCSR04 ).\nA Mini breadboard.\nA 9 volt battery.\nA 9 volt battery connector.\nDC male power jack.\nA Buzzer.\nSome Jumper wire.\nAn Broken cellphone from scratch.\nA Toggle switch.\nOther tools and parts used in this project :', u'entity_id': 770, u'annotation_id': 10333, u'tag_id': 1518, u'entity_type': u'post'}, {u'quote': u'@Alberto @MassimoMercuri\xa0[Je n\'ai pas r\xe9sist\xe9 \xe0 faire ce mauvais jeu de mots ...]\n\nMy guess is you don\'t see value in sentiment analysis because up to now you have been able to track almots every and each of the users, and probably every and each post/comment on edgeryders.eu -- this is no surpirse, it\'s your job as a community manager!\n\nWhat if the community grows, what if the volume of excange makes it so that you cannot afford to track each individual or post?\n\nMaybe "sentiment" is not the good way of thinking about how to use this technology. And maybe, it\'s true, sentiment coloring is not that useful.\n\nLet\'s give it a second chance.\n\nWhat if, on top of the topics that people discuss, I can tag some posts/comments as being "opinions", "knowledge sharing", "second", "contradict", etc.?', u'entity_id': 25117, u'annotation_id': 13035, u'tag_id': 1519, u'entity_type': u'comment'}, {u'quote': u'I would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care\xa0priorities in a whole different light. Or the layers you mention ("opinion" "contradict" etc). But if you have an ethnographer analysing the more in-depth\xa0conversation, isn\'t that\xa0covered?\xa0@jimmytidey is involved in\xa0mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes?\xa0http://localnets.org/', u'entity_id': 33416, u'annotation_id': 10336, u'tag_id': 1519, u'entity_type': u'comment'}, {u'quote': u'Open your heart.\nImagine you read posts, you are trying to understand what is going on in the Op3nCare crowd, maybe looking how newcomers are doing, maybe looking for places where lively debates take (took) place.\nHow does the sentiment scale used in the demo serves your search? How would you go from the sentiment map to the data you are looking for?\nCome on guys, be generous, tell me all -- I need it to fuel WP5. Thanks!', u'entity_id': 15809, u'annotation_id': 10335, u'tag_id': 1519, u'entity_type': u'comment'}, {u'quote': u"We have mentioned it would be interesting to provide sentiment analysis feedback to those who would monitor conversations taking place on the forum.\nI am interested in finding an appropriate sentiment landscape, I thought the experiment by C. Healy would be worth trying. You enter words, the app scrapes twitter for you and then\xa0displays a cloudpoint (points correspond to tweets). Go play!\nI am also interested in your feedback about the utility of such a viz. How would you intuitively use such a represntation? Just look at it? Drive the navigation between posts (here\xa0tweets) from that viz? Query the posts and get back to the authors' neighborhood (in the crowd of all authors)? Etc.", u'entity_id': 5440, u'annotation_id': 10334, u'tag_id': 1519, u'entity_type': u'post'}, {u'quote': u'The call itself is based (it has a record) on the physicality (fisicit\xe0) of the object, as it was a result of the main experience of WeMake with opencare, given that all services needed new design and that service and hardware may reach a ratio definitely in favour of the services (service 90%; hardware 10%)', u'entity_id': 574, u'annotation_id': 10338, u'tag_id': 1521, u'entity_type': u'post'}, {u'quote': u"@Branislava and @Noemi, unfortunately, i haven't been south from Slovenia - I know a bunch of progressives from the Balkans, but sadly none of them is strictly dealing with LGBTQ rights. If I come across something interesting, I will let you know - If you want to work with really good organizations, I would suggest checking Rutgers. In Poland, we have a wonderful group called Ponton. My sex educator friend always said the best places for sex ed are Netherlands and UK (I guess France and Germany are also pretty wonderful), so I would do more digging there.", u'entity_id': 14745, u'annotation_id': 10340, u'tag_id': 1522, u'entity_type': u'comment'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 10339, u'tag_id': 1522, u'entity_type': u'post'}, {u'quote': u"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming.\nWomen are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation.\nThe violence being perpetrated against girls and women it takes on epidemic proportions.\nAnd instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their \xa0life, their well-being.\nWomen who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ...\nWhat are the primary tasks?\n\xa0To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care.\nThe right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee\nTo be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research\u2026.\nMany seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges.\nWomen \xa0demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed\u2026 crippled\nMany studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor,\xa0The whole society has benefits and profit from that, also\xa0economic empowerment of women can give them the strength and the power to fight for their rights.\xa0What is I have to emphasis\xa0totally crazy, to fight for something that is obvious and should be guaranteed.\xa0But since we live in such a country and such a world, which I will say freely that's gone completely crazy.\nThe first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have\xa0to forget that terrible sentence, you're a girl, you you have to let go, you have to listen, \xa0you must be good,\xa0obedient\nWell, \xa0you do not have to do anything\nBe good and obedient and you'll be good and obedient patients\nIf you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default, \xa0you can be scientist, pilot, astroanut, everything you want\nOf course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing, \xa0to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and \xa0works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable\xa0and smart and successful women, because obviously while men are leding,\xa0we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give\xa0positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is \xa0always something wrong , they have to be perfect to be loved because they are \xa0upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie\xa0and \xa0to be good...\nIt is a great theme, and very serious and \xa0requires indispensable\xa0large and big steps to make the change, so we\xa0won't\xa0any more\xa0read about dark statistics or to be a part of it,\nI forgot about inadequate or not existing\xa0 health status of women and treating them, how horrible gynecologist acting,\xa0a large number of cancers that are not detected at time, shame, \xa0when they\xa0give birth listen insults and so on...\n\xa0I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do\xa0because it is not a choice any more it is our obligation.", u'entity_id': 858, u'annotation_id': 10343, u'tag_id': 1523, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 24411, u'annotation_id': 10342, u'tag_id': 1523, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 749, u'annotation_id': 10341, u'tag_id': 1523, u'entity_type': u'post'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 10344, u'tag_id': 1524, u'entity_type': u'post'}, {u'quote': u"I believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what's alive in you at the moment. This worked pretty well.", u'entity_id': 24534, u'annotation_id': 10351, u'tag_id': 1527, u'entity_type': u'comment'}, {u'quote': u"My main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what?\xa0I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it's just me", u'entity_id': 8193, u'annotation_id': 10350, u'tag_id': 1527, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22821, u'annotation_id': 10349, u'tag_id': 1527, u'entity_type': u'comment'}, {u'quote': u"t's a harsh truth that there is no cookie cutter strategy, that everyone has to go through their own process, solve their own puzzle. Although this process is different for everyone, for each part of it there are similarities with someone, somewhere. To me it appears that a big part of the search is identifying pieces of your puzzle\xa0in other people (eg. some advice)\xa0and testing if it gets you closer to finishing your puzzle. That's where community comes in handy: a large group of people equals a lot of potentially useful pieces. The analogy is a simplification, but it helps me make sense of it.", u'entity_id': 22611, u'annotation_id': 10348, u'tag_id': 1527, u'entity_type': u'comment'}, {u'quote': u'O: I would talk to someone who had a similar experience and can connect with me and understand me.', u'entity_id': 5658, u'annotation_id': 10347, u'tag_id': 1527, u'entity_type': u'post'}, {u'quote': u'It is very interesting to get to know and understand people, especially trying to know their interests, passions and habits. Body language is a key to getting to know and understanding people well.From the way they greet, sit eat and talk.Some people are introverts , while others are extroverts. some are timid and some are loud and very bold. But ig you find like -minded passion driven young people, lets say not for profit making team members, they will definitely share same goals which might be for collective good of their community. I will recommend, you read more on social phsychology and body language.', u'entity_id': 15150, u'annotation_id': 10352, u'tag_id': 1528, u'entity_type': u'comment'}, {u'quote': u"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.", u'entity_id': 23874, u'annotation_id': 10353, u'tag_id': 1529, u'entity_type': u'comment'}, {u'quote': u'2. Time set aside for planning, group structuring and reflection. The core group had known each other for about 3 years prior and intersected in various projects. The cooperative model looks promising because in it, members share clear rights, but they also share the responsibility in a way that doesn\u2019t break the structure when someone drops out. Everyone participates in weekly meetings and they apply sociocracy 3.0 to all decision making. Reportedly, it is not easy, but the collective understands that it\u2019s a process and gets help when needed (professional coaches).', u'entity_id': 36387, u'annotation_id': 11707, u'tag_id': 1531, u'entity_type': u'post'}, {u'quote': u'This accountability model for health - mental, physical, and social - will operate irrespective of place, and for all bodies seeking health care in assistance with all ailments and disempowerments. This tool would be informed by the integrated model of health implemented by the clinic at Bio.me in Thessaloniki and the mental health questionnaire developed by the Icarus Project in NYC, and other relevant tools we continue to encounter along the way. Inspired by the Bio.me system, our model functions as a\xa0triage system that helps participants understand the complete picture of a person\u2019s health first through a longform interview, followed by periodic \u2018check-ins\u2019 or urgent calls with the committed group. \xa0case \u2018health practitioners\u2019 are understood as those who share the responsibility of one another\u2019s health. This means that accountability works in all directions and that if we uphold certain procedures, everyone is capable of providing care. Following the initial long interview, a \u2018health card\u2019 is generated and shared among the team, which includes the care seeker. This serves as a health record that can be added to over time and that the care seeker can use in emergencies. Through long term support and awareness of individual and social patterns, the health care practitioners can connect health care seekers with local resources, provide consultation,\xa0and solidarity.', u'entity_id': 826, u'annotation_id': 10355, u'tag_id': 1531, u'entity_type': u'post'}, {u'quote': u'Hey @Yannick , thanks for your patience in answering all these questions. The question by @Eric_Hunting reminded me of a previous experience with a project called the unMonastery. We had the problem of developing a physical space that was meant to connect to a broader community, and the community was physically far from the space.\xa0\n\nWe discovered that publishing the plans made everything clearer and more concrete, and generated a lot of excitement and emotional attachment. People also started to suggest really cool ideas for furniture.', u'entity_id': 27803, u'annotation_id': 13037, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'It is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy_P. , while wondering how to support refugees,\xa0both have found that cooking is fundamental to care (one, two)', u'entity_id': 16858, u'annotation_id': 13036, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'- I cannot help feel strongly that more than services,\xa0people need to be themselves needed - part of their solution. Too many of the ways our societies are set up make this difficult. Margaret Wheatley said \u201cA life well lived is one in which we each find an opportunity to give our gifts rather than have our needs met.\u201d and in my experience communal spaces create more opportunities for this to happen and meet more of the spectrum of human needs that our current divided lives make possible.', u'entity_id': 23520, u'annotation_id': 10369, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'From 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.\xa0\nOur goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.', u'entity_id': 828, u'annotation_id': 10368, u'tag_id': 2198, u'entity_type': u'post'}, {u'quote': u'How did you get hold of the space and for how long?\xa0While The Reef is similar in the idea of sharing physical space to support each other, the model for making it sustainable and not conditional on core team members or Edgeryders as an initial (small) investor is a challenge.. which is why we want to run a session on co-designing it during our Festival in the fall. Of course, this is designing by doing, as we cant afford a year of just planning.\xa0Would you be interested in joining the festival?', u'entity_id': 14071, u'annotation_id': 10367, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'One thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, "it\'s just a job" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.', u'entity_id': 21701, u'annotation_id': 10366, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29086, u'annotation_id': 10365, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'\xabFuture Tools\xbb is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood\u2019s daily activities and funnel the parents\u2019 interest in social promotion for their kids towards a more inclusive society.\nThe abundance of open resources that can be freely accessed through personal learning environments to learn digital skills \u2014such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world\u2014 is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future.', u'entity_id': 796, u'annotation_id': 10364, u'tag_id': 2198, u'entity_type': u'post'}, {u'quote': u"Hi Tomma,\nThank you so much for sharing this. It's fascinating to see that there isn't a huge difference between the way people react to their spaces in an official camp and an unofficial camp like the Calais 'Jungle'.\nNoone ever likes the food that is provided.\nAre residents allowed out of the camp during the day? Are they allowed to bring anything they want back in with them? Or are they basically in detention?\nBecause if the can leave and bring anything back in then why not provide a space nearby where they can come and collect donated items, tools etc in exchange for doing something else (e.g. cooking food for a cafe, running a cafe, teaching arabic, sharing their culture etc)", u'entity_id': 16163, u'annotation_id': 10363, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'workshop, library, kitchen, and meeting space, we focus on efforts to self-organize, connect, create infrastructures, and develop greater individual and collective efficacy.', u'entity_id': 521, u'annotation_id': 10362, u'tag_id': 2198, u'entity_type': u'post'}, {u'quote': u'becasue mainly co-living takes time and it is not a professional activity. this is not a community like organization that lives as a whole, it is the sum of families which tried to improve a better way of living in a light way. so no huge ambition was inside it, so i feel that everything that happen is like a miracle, even with all the troubles and limitation increased also by the economic crises that hit so many of us here.', u'entity_id': 24390, u'annotation_id': 10361, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'I have known about this project for\xa0years (I have even visited!), and\xa0really like the way you guys seem to have adjusted and improved your ways of living together. My own co-living experiment is much smaller, and much younger than yours... there is a lot to learn here.', u'entity_id': 15499, u'annotation_id': 10360, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'Alberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and\xa0one of the units in each building is rented to the "community manager" tasked with working on social ties between people. Not sure about details, but it seems it\'s financed by Casa Depositi e Prestiti.\xa0Does your project have anything to do with it\xa0or better yet: do you see your project\xa0coming to influence social policies in Italy? It seems it\'s 8 years along the line and you guys seem to have great results to show as to what the future looks like.', u'entity_id': 8575, u'annotation_id': 10359, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'Since summer 2009, 30 families started living together in the first \u201cofficial\u201d co-housing in a periferic neighborhood in Milan, and probably of whole Italy. To my knowledge, the phenomenon has been often recorded by the Media (radio, tv, magazines and newspapers) and Polytechnic of Milan (Ph.D. and Master dissertations) as a first and original case. For some months and years, people liked to come and visit, check, make interviews about an experience that, in those years, sounded strongly innovative and now is consolidated. Some other co-living \u201cresidences\u201d (but not many) of this kind have been promoted and started in the north of Italy and not only in Milan.', u'entity_id': 743, u'annotation_id': 10358, u'tag_id': 2198, u'entity_type': u'post'}, {u'quote': u'b) phisical proximity and real realtionship', u'entity_id': 9138, u'annotation_id': 10357, u'tag_id': 2198, u'entity_type': u'comment'}, {u'quote': u'When living in Istanbul it occurred to her that people interacted much more easily with each other in the street, even complete strangers could discuss with each other when waiting for the bus. She doesn\u2019t know exactly why it occurred much more often in Istambul then in Brussels but she had the feeling the way we use time was part of the solution. Living small gives you much more time to just sit around, be outside and make you car independent. Only this simple part, of not having a car makes you much more able to interact with the people you see. But don\u2019t be alarmed; this discussion didn\u2019t became a \u2018everything was better in the past\u2019 discussion.', u'entity_id': 745, u'annotation_id': 10356, u'tag_id': 2198, u'entity_type': u'post'}, {u'quote': u'Network reciprocity, mutuality, shared values;', u'entity_id': 6462, u'annotation_id': 10375, u'tag_id': 1533, u'entity_type': u'post'}, {u'quote': u'Connected to sharing everything - vs - sharing common values. Design, expectation, governance.', u'entity_id': 6415, u'annotation_id': 10374, u'tag_id': 1533, u'entity_type': u'post'}, {u'quote': u'Your Articles of Association and other agreements to which one signs when joining are generally material in nature. \xa0There is a document about\xa0shared values, of which the formal ones are ecological values. \xa0But it also says "we would like our community to be built on trust, respect, friendship and understanding." But those four are not part of the formal agreement from what I could see.', u'entity_id': 15392, u'annotation_id': 10373, u'tag_id': 1533, u'entity_type': u'comment'}, {u'quote': u'It is a little like a digital advertising screen, broadcasting a single, one-way message to a public who have no choice but to receive it. Just like a digital advertising screen, this kind of healthcare can seem cutting-edge, innovative and technologically impressive, but its values do not respect the uniqueness of individual or place, nor do they promote communal solidarity and empowerment. So long as this is the case, communities will continue to vote with their feet, seeking out new forms of adaptive Open Care that address their real mental, physical and social needs.', u'entity_id': 549, u'annotation_id': 10372, u'tag_id': 1533, u'entity_type': u'post'}, {u'quote': u'Hopefully with shared MISSION and VALUES,', u'entity_id': 12142, u'annotation_id': 10371, u'tag_id': 1533, u'entity_type': u'comment'}, {u'quote': u'An 11.000 sqm house gives space to everyone who has an in^terest in contributing time, skills and resources into a manifestation of unconditional sharing and co-creation.', u'entity_id': 14071, u'annotation_id': 10382, u'tag_id': 1534, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 10381, u'tag_id': 1534, u'entity_type': u'post'}, {u'quote': u'microwelfare. we sill live in a "normal way"...but we share time, infromation, products, \xa0skills, decision maing on shared purchases...anycase it is a light version of what you think.', u'entity_id': 24390, u'annotation_id': 10380, u'tag_id': 1534, u'entity_type': u'comment'}, {u'quote': u'People like us need to be free, want to contribute to different projects, want to be able to influence and take ownership of processes, want to share...', u'entity_id': 19801, u'annotation_id': 10379, u'tag_id': 1534, u'entity_type': u'comment'}, {u'quote': u'This story is about an ongoing project that could pilot a new model of sharing economy that by succeeding could lead to the flourish of a new collaborative economy.\nFairbnb is in an early stage, we didn\u2019t launch the beta yet, but I\u2019m convinced for some reasons that I will briefly explain at the end, that it represents a huge opportunity to change the digital economy.', u'entity_id': 829, u'annotation_id': 10383, u'tag_id': 1535, u'entity_type': u'post'}, {u'quote': u'What did work well was:\xa0\n\n\nsharing from your own experience\nlistening and asking questions to explore the perspective\nholding space: being open to the perspective without taking it personally, listening with from an open space\nusing a talking stick, so one could speak at the time.\xa0\na good host and facilitator who\'s comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.\xa0\n\n\nIn my experience these circles of openness help build relationships of trust and create a vital space for transformation.\xa0\n\nLet me know if you want to find out more. I\'m playing with the idea to organize new "Circles of openness" over the next months.', u'entity_id': 6401, u'annotation_id': 13041, u'tag_id': 2201, u'entity_type': u'post'}, {u'quote': u'More importantly for advancing your cause, I think it is very impactful when people who are or were once patients share deep insights about the experience. This is the case of @Sharon_Kinnane and her story is here. Curious to see if\xa0your groups might benefit from a connection abroad that helps your future projects in some way.', u'entity_id': 21420, u'annotation_id': 13040, u'tag_id': 2201, u'entity_type': u'comment'}, {u'quote': u'My takehome points: (1) it is important to find likeminded people to share dreams with, but (2) it is frustrating when that does not go anywhere concrete. It would be great to have some kind of information about people\u2019s skills.\n\n\n\nhazem:', u'entity_id': 38811, u'annotation_id': 11745, u'tag_id': 2201, u'entity_type': u'post'}, {u'quote': u"When Denise was diagnosed with in 2015 she had support from family and friends, but still found that they couldn't fully understand what she was going through. It was only by chance that Denise crossed paths with Carry Hendrix who was going through a similar diagnosis. An interaction at the gym brought these women to share the same space. Their friendship started and strengthened, and from that bond, it eventually led them to an idea of starting CoreCareCollective. An initiative to support the emotional and social needs of people living with cancer. This initiative promises to create a network of support dedicated to ensuring all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.", u'entity_id': 35903, u'annotation_id': 11594, u'tag_id': 2201, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 10389, u'tag_id': 2201, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10388, u'tag_id': 2201, u'entity_type': u'post'}, {u'quote': u"@MAZI I figured you might want to read this.\xa0Thom, @Bernard @Teresa_Nilan and their team are incredibly committed to this project and I see you guys comparing notes.\nFor reference, MAZI's story also makes a\xa0compelling case for peer support groups and they run these gatherings in both Athens and Thessaloniki. It seems to me they also have had some successes with funding coming in.", u'entity_id': 21632, u'annotation_id': 10387, u'tag_id': 2201, u'entity_type': u'comment'}, {u'quote': u'@Cindy, I was reading on your user profile about the support you get from the family you work for. Does this more positive experience reveal new approaches in your design? Or can those people on the "right" side of the debate also offer helpful insights? The advantage is that they can relate to both German peers and foreign peers, and so have more complete information.\xa0I would think\xa0they can become bridge builders in a solution design.', u'entity_id': 16089, u'annotation_id': 10386, u'tag_id': 2201, u'entity_type': u'comment'}, {u'quote': u'While it\u2019s true that each of us is unique and may have unique circumstances, none of us is alone in our struggles. \xa0It great reduces isolation and alienation. It increases the sense that \u201cwe\u2019re all in this together,\u201d and kind of normalizes the individual situations. While members, in turn, encourage each other for support, feedback, and connection, instead of getting all that from the clinician.\xa0 By sharing experiences we all learn from each other and navigate out of their current situation and ultimately helps to find your voice in the sense of relating to others.\xa0 On the flipside, it takes strength and some recognition of the needs of others to function well in a group, not be destroyed by it. Creating the community atmosphere to overcome challenges and gain confidence.', u'entity_id': 26061, u'annotation_id': 10394, u'tag_id': 1538, u'entity_type': u'comment'}, {u'quote': u'I was lonely for most of my life, I don\'t have\xa0anything too complicated with my family and I had a few friends while growing up but I\'d never let anyone in. I had never exposed myself or talked about my feelings. As time went by I got better and better at it. A very good listener my friends called me. Even today I still find myself shifting the subject of the conversation whenever it gets to me.\nI tried to act like I was Ok, or maybe I was just not aware. I had an eating disorder and a sleeping disorder and it got pretty bad at some points. Almost every night I\'d stay in bed awake waiting\xa0for my family members to go to sleep, then I\'d storm the fridge eating like 4 hungry people, go back to bed feel horrible and couldn\'t fall asleep.\nI lived like that for many years, sometimes it was better sometimes worst. I can\'t tell what drove into seeking help but around the age of 22 I told my mother I think I need help. She was very happy that it came from me rather than her as she was thinking the same.\nI started\xa0going to therapy. It took me nearly 4 months to gain the trust I needed to open my heart but with time my therapist and I became closer and through our conversations I slowly began to understand what my life was missing: love, family and friends. Yeah I\'ve had my loving family, a few friends and a number of short romances but none of it real because I didn\'t allow it to be, I\'ve never been me.\n4 years later I\'m studying industrial design and doing Erasmus in UdK Berlin.\n\nAs part of our human centered design course "Hacking Utopia", my partner Pauline and I are focusing on the challenge how we might boost each other\'s mental and spiritual resilience. After posting here story to Edgeryders, our team member Nele was recommended in a comment to watch Brene Browns Ted talk, The Power of Vulnerability. We have found it so inspiring, it was exactly what we were talking about.\nAt the moment we are trying not to have any idea of how our product will look like so that we can have a neutral research and hopefully a surprising result, but we are looking in the direction of a design intervention that will encourage people to be vulnerable and share their feelings with their loved ones.\n\nBoth Pauline and I went through therapy and we both agree that what was missing in our lives was the ability to share our difficulties with our close ones. We discovered that both of us had to use objects in order to speak to our therapists. I had to put a cushion over my knees and Pauline was always keeping her hands busy by playing with hair bands or ripping pieces of paper, avoiding eye contact.\nWe were wondering whether you might have made any similar interesting experiences/observations to share with. Do you feel comfortable sharing your feeling with others? Can you get people to open up to you?\nWe are trying to gain insight on what kinds of stressors people find difficult to talk about and how we might make it easier for people to overcome shame and share their feelings, drawing inspiration from any culture, any time.\nAlso, if you have any other Ideas, thoughts, articles, projects, products or whatever you think can inspire us further please let us know.\nThank you so much for reading so far,\nTeam JUS.\nP.s. - We really liked this short video and wish we could make a sofa that feels as good as the hug in the picture above.', u'entity_id': 678, u'annotation_id': 10392, u'tag_id': 1538, u'entity_type': u'post'}, {u'quote': u"this is an interesting question. A couple of years ago I met someone whom I hadn't seen in a long time, a university pal. We had a long conversation about death because his Dad was unwell. Without thinking much of it I wrote a post about our encounter here. Check out the comments, you may find them of interest.\nWhen younger I found it quite difficult to even acknowledge feelings let alone talk about them. Especially not if it was a space where I knew I would be meeting the same people again and again. Something about not being able to shed skin and then move on made it feel like a trap. Then something snapped last year. I felt unable and unwilling to not be sad and let others know what was going on and what I needed to be ok + how they could interact with me. I unpublished it from my personal blog, but if it's helpful to you I can republish it here. Let me know.", u'entity_id': 14743, u'annotation_id': 10391, u'tag_id': 1538, u'entity_type': u'comment'}, {u'quote': u'In our previous contributions on Edgeryders we described how we started off with the question of making sadness, unproductivity and inefficiency less shameful. We discovered two TED talks that influenced us greatly: The power of vulnerability by Brene Brown and Depression, the secret we share by Andrew Solomon. As later confirmed by the psychologists we interviewed, these talks made us understand that sharing our feelings is a key step towards mental resilience. Establishing a sustainable, personal connection this is necessary for recovery and growth. When we hide our condition, we ignore it, it becomes worse.', u'entity_id': 511, u'annotation_id': 10390, u'tag_id': 1538, u'entity_type': u'post'}, {u'quote': u"thanks for getting back to me. I definitively consider myself lucky and realize that I have a very strong support system. The thing that struck me was that even in my comparatively 'good'\xa0situation, it was so difficult for me to communicate my feelings.\xa0For me, this\xa0was a huge added pressure and kept\xa0me from getting help\xa0for a long time.\xa0In our project group, we are investigating how young people, particularly in creative professions/fields of study, deal with issues of mental well-being, who they share their feelings with, or\xa0why they don't.", u'entity_id': 11003, u'annotation_id': 10393, u'tag_id': 1538, u'entity_type': u'comment'}, {u'quote': u'How to put everyone together productively without eg. 2 people having to work full time? Two aspects: community management and information sharing.', u'entity_id': 6459, u'annotation_id': 10400, u'tag_id': 1539, u'entity_type': u'post'}, {u'quote': u"Find good quality online educational material that offers an introduction to\xa0synthetic biology, molecular biology, protein engineering, genetics and other relevant fields. Add it to the 'Technology Basics' section with a short description containing what's it about and why people should use it.", u'entity_id': 6412, u'annotation_id': 10399, u'tag_id': 1539, u'entity_type': u'post'}, {u'quote': u'Open care is certainly related to the dimensions of access to practices, but also to information not as end-users, but as editors and reviewers. The evening was a good example of viable and inspired assemblage of citizens, institutions, norms and devices for the public.', u'entity_id': 850, u'annotation_id': 10398, u'tag_id': 1539, u'entity_type': u'post'}, {u'quote': u'Hi\xa0Alberto, hello Alessandro,\nhow nice to find feedbacks! happy to try to answer to your questions. Sorry Alberto, I missed your\xa0comment and noticed it only now. As Alessandro points out the project is divided in several phases.\nIn the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:\xa0\nCarrots, Broccoli, Fennel = Low Histamine\nTomato, Orange, Kiwi = High Histamine\nCoffe, Garlic, Grapes =\xa0sometimes tolerated\nThis are informations\xa0that\xa0anyone can find online but while at the supermarket or while choosing\xa0your ice cream flavour, it is handy to have it quickly ready all together in an app.\nThe first phase of the app will also contain a list of\xa0Common symptoms: Headaches, migraines,\xa0Vertigo, dizziness,\xa0Abdominal cramps ecc.\nAnd it will allow the user to check symptoms and associate them with foods into a diary/calendar system.\nThis is handy in case the user wants to reintroduce a food or wants to monitor the effects\xa0of some food that are sometimes tolerated.\nIn the first phase of the app the system will not ask many questions nor give too many informations.\xa0It will mostly be a structured tool for annotation that will empower the personal\xa0awareness of the user.\n\nThe app \u201cClue\u201d (menstrual cycle tracking), is a very good example in this terms, it doesn\u2019t\xa0do much next to allowing women to structurally note down dates and\xa0symptoms, yet it is a powerful tool of awareness.\xa0\nThe\xa0data-analisys will only enter \xa0in the\xa0second phase. For this there will be some work to be done to design the interaction between what we find trough the data, the assumptions we already have, our approach on care, and the collaboration with practitioners and medical experts.\xa0\nI\xa0hope\xa0that\xa0I\xa0have answered your questions and please let me know,\xa0I am happy to answer if there are more questions.', u'entity_id': 20905, u'annotation_id': 10397, u'tag_id': 1539, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 535, u'annotation_id': 10396, u'tag_id': 1539, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 13045, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'The "teaching" in the title of this comment is not a pun with the Irish "teach\xedn", by the way. I was hoping to learn more about building the tiny houses. How do you do it? What is needed to build them? How do they connect with your gardening project? Could you not have made a garden next to a "normal" house? If the West of Ireland is anything like rural Italy, there will be plenty of unoccupied property lying around. Also: what kind of climate is compatible with a tiny house?\xa0\n\nThere is another sense that no pun was intended. I find that teaching (and, reciprocally, learning) is good for the soul, the collective "soul" of the community as well as the individual one. In the hacker community there is a strong orientation to knowledge sharing. It is useful, obviously, but it seems that many people do it because it\'s the right thing to do and because it feels good when done right.', u'entity_id': 9161, u'annotation_id': 13043, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'Because individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and/or more people can be seen.', u'entity_id': 13679, u'annotation_id': 13042, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'A [diabetes] patient coop would be able to decide how much effort to put into prevention or researching cure vs manufacturing.', u'entity_id': 38856, u'annotation_id': 11871, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'What have we learned about having citizens define and help advance our research project?\nOur team has benefitted from participation from people with a broad diversity of backgrounds and interests - from veterans of producing biologics at pharmaceutical companies, to people with PhDs and years of work experience in relevant fields, to college students and total beginners who are just interested in starting to learn\xa0and contribute. The sharing of knowledge and responsibilities\xa0within our group thus mirrored what we were seeking to support beyond the group.', u'entity_id': 859, u'annotation_id': 10429, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u"Hi @Lucy , welcome on the platform!\nFor this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together.\nWe should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we'll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?", u'entity_id': 20342, u'annotation_id': 10428, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u"Wow - congratulations on the World Bank bid. That's huge.. It would be great to dig deeper into these kind of strategies. It would be great to see your past funding applications.\nI had a conversation with Shannon Doesmagen (PublicLab executive director) recently - they frequently act as fiscal sponsor for other projects, fielding a lot of funding from private foundations and donors, very occasionally public funding (they're based in the US). Most recently they've been managing a lot of funding that has come in for the Environmental Data Governance Initiative (EDGI). It's a little different, but the same trust issues apply. I think they would also be happy to share the details of their practices.\nIn Germany, Open Knowledge Foundation fairly recently launched their Prototype Fund, which distributes funding from the German Education and Research ministry to smaller civic tech projects. Again, similar but different. I could see what I can find out about that as well.\nNeither of those are so clearly about ecosystems or focussed collective action between smaller initiatives, as edgeryders is. But interesting nonetheless. I think this could be a really interesting and practical discussion.", u'entity_id': 14809, u'annotation_id': 10427, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u"A little context: Last year we ran a small experiment to build a collective bid for the MacArthur Foundation's 100 Million USD grant. Edgeryders wrote the meta application, and then set up a simple process through which projects could attach themselves to the bid (approx requirement of work for each participating project=\xa02.5hr). The Edgeryders organisation was the organisation which would then take responsibility for managing the funds.\xa0We did manage to get past the first round (administrative due diligence). It was a good way to go about it in that it also helped us better understand what people in the OpenCare/broader Edgeryders community need. The design of the OpenVillage festival is based on what we learned.\nI don't know if you saw that we just won a World Bank bid. The work we will be doing will build on this idea of nurturing initiatives as part of a collective effort towards something. We're still learning how to do this, but the results so far are promising. So maybe it could make sense to dedicate a session to sharing strategies, even past funding applications that worked for remixing etc...", u'entity_id': 7509, u'annotation_id': 10426, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 834, u'annotation_id': 10424, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 10423, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u"It's a great vision. Personally, I see a direct analogy with knowledge of using open source software. If we were to arrange ourselves into levels of knowledge, with one person at each level looking after a few at the level below, then all questions could be answered without the experts being overburdened. Why not the same with health? Well, the danger is undiagnosed serious conditions, and that has to be factored in somehow. But apart from that, it's what we do anyway in a small way. If there is something the matter, we start by asking maybe an older family member, then if that person is not sure, we can ask a nurse, then a general practitioner, then a specialist....", u'entity_id': 21640, u'annotation_id': 10422, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u"I would like to make a comment to your idea and pssdgroup5\xa0I must say that it is a brilliant topic and also a\xa0very huge space to contribute and envelope students and helping them on their way forward.\n\nI can value this very good, because my country Kosovo ( FYR Of Yugoslavien ) is the only state in the Europe Union which citizens are forbiden to travel abroad Kosovo,although we have family members and friends in every country in Europe we are not allowed to travel in Schengen Zone without a special permission which is permitted to only 10% of the popullation. The youth and the students are suffering from this, making them unable po expand their knowledge and reach higher level of education, we are censured to one of the human rights, free movement of the popullation.\n\nThere are several student exchange programs with the United States and the EU which would be very helpfull to start sharing and collecting new connections and educations. I have needed such a exchanging programm as a student, eventhough i didn't make it to be a part of an exchange program as a participiant.\n\nThumbs Up and wish you all the", u'entity_id': 7661, u'annotation_id': 10421, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u"Fastforward 8 months and I've developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory,\xa0collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.", u'entity_id': 33730, u'annotation_id': 10420, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14770, u'annotation_id': 10419, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases. \xa0 Beyond the key "theoretical" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.\xa0\nThe online facebook group, is not a tool for curative or palliative care such as online consultations with drug prescriptions. Medical doctors are involved in the discussions and if required, they can give offline, specific orientations to go for curative consultations; but discussions in the group, do not involve curative or palliative care.\n2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be\xa0a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation \xa0on some specific subject with high interest and\xa0later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you', u'entity_id': 21489, u'annotation_id': 10418, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'C\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.', u'entity_id': 672, u'annotation_id': 10417, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'The Prinzessinnengarten is a communal project; our vegetable beds are shared without anyone claiming individual ownership. Over the course of four years, supporters from the local community have dirtied their hands in order to. This takes place in a neighborhood that is one of the most densely developed and socially most vulnerable in the city. Here a garden evolved that can sustain itself financially and that grew into a locus of social exchange and mutual learning.', u'entity_id': 507, u'annotation_id': 10416, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu\u2019s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy.\nNext to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.', u'entity_id': 711, u'annotation_id': 10415, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'Shared knowledge\nOpen Source is all around us, and also in Huis VDH. After living for 5 weeks in an open source innovation camp called POC21, I find solutions to every kind of problem through this model of thinking. Knowledge is there to be shared and if we create the right methodology we will find more easily solutions to any kind of problems. That is why we started mapping out every encounter we had through metamaps, we budget our work with cobudget and use a sharing file system inside the house.', u'entity_id': 520, u'annotation_id': 10414, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'Assist in the creation of a movement on food sovereignty in Greece; link existing initiatives with each other and with similar projects abroad; and promote FS in all ways possible.\n \n\nIn collaboration with other European partners (like La Via Campesina and CAWR) set up (a network of) Agroecological Training centres and knowledge exchange hubs. We need to find ways to make our farmers independent form fertiliser companies (even if organic), seed producers and certifying organisations. We need farmers who can stand on their own feet, be self sufficient and knowledgeable to deal with eventualities by using what nature provides.\n \n\nSave Greek agricultural land from the Hellenic Republic Asset Development Fund and ensure its utilization through concession or purchase by our group in the context of communal ownership. This will be a major undertaking ensuring the right of small agroecological farmers to have access to land and safeguarding the land\u2019s status as a common good.\n \n\nIncrease awareness and offer technical support, training, and tools to create CSA schemes around the country.\n \n\nPromote the creation of Food Policy Councils around the country.\n \n\nBecome the official Greek hub for informal groups working on food sovereignty, enabling them to gain access to financial support, tools and other resources.\n \n\nIncrease awareness and educate farmers and consumers in order to become more conscious through seminars, campaigns and training sessions about sustainable farming methods and consumption patterns and the agroecological way of life. Also offer tools and training in communication and inner development that are crucial factors for the success of any endeavour (eg non violent communication, social permaculture and inner transition). Needless to say that schools and children will be pivotal in our schemes.\n \n\nSo if all of this sounds interesting, if you feel the urge to get involved, or if you have information and contacts that can help, please contact me to join forces', u'entity_id': 560, u'annotation_id': 10413, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'It\'s not that humanity is out of solutions. The problem is, as always, about spreading knowledge and organizing collective action on a massive scale. That\'s why I like that @Michel focuses on the education part. Yet nobody has cracked the collective action problem yet (and not just because we\'re up against strong capitalist "collective destruction") \u2026', u'entity_id': 26958, u'annotation_id': 10412, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'In addition, it\u2019s important to develop a survival handbook with the aim to provide \u201chow-to\u201d guidance based on practical experience in combination with academic knowledge. And the challenge is to respond to all these arisen questions. Or add new.', u'entity_id': 550, u'annotation_id': 10411, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u"What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope", u'entity_id': 11020, u'annotation_id': 10410, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'Eventually I bought a bus. My very first tour this week goes to Ghent, where I already have connected with potential participants. It will be a chance for me to see in what ways I can connect with groups. How to talk to people about trauma? How to equip them with knowledge and capacity to deal with their own experiences? And what could \xa0be a possible model for sustaining the project, as I really want to go far with my tour, reaching the Balkans, Greece, visit communities out there. Ultimately, I\u2019d also like to volunteer in refugee camps and serve with my knowledge and experience there (I do work in an asylum center in Belgium once a week).', u'entity_id': 740, u'annotation_id': 10409, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u"There is another task, which is more time-consuming and complex, in terms of research. I'm in the team-building process that will eventually become a non-profit legal entity, to develop a Handbook for the Management of Material and Resources, in cases of emergency. For example, due to my professional background, I know how to sort and store thousands of clothing items. Somebody else might have other skills. This is also connected with the sharing of knowledge of alternative treatments, practices or hacks, that might offer cheap and practical solutions to people in need. For example, using cocoa powder as a shampoo, or other uses of baking \xa0soda, salt, etc.", u'entity_id': 737, u'annotation_id': 10408, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'The only way to truly build bridges between communities is to \xa0have them work together, eat together, talk and exchange knowledge about each other. (even then you\xa0might get an incredible reaction like "hey Mohamed is such a nice guy...FOR a Morrocan", so one stops regarding him as a foreigner but \xa0he stays an exception, he is UNLIKE those others\xa0:).', u'entity_id': 26012, u'annotation_id': 10407, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'Part of what builds trust is if people can recognise their own perspective, language and experiences in the description of the situation. That they are taken seriously as experts in their own lives- that their own ambitions, words and thoughts weigh at least as much as input of credentialed domain experts (who may never have set foot in the neighborhood). This was echoed by newcomers frustrated by discussions about training them to fit into pre-defined slots in society, based on what they perceived to be unfounded assumptions by institutional actors about what they could or could not achieve: \u201cDo not put a cap on my dreams, just give me access to the tools and see what I can build with them\u201d.\u200b', u'entity_id': 5234, u'annotation_id': 10406, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'Interoperability, knowledge transfer and Institutional memory: I heard many calls to \u201cmake information available about how the system works\u201d, and "calls for online platforms to fix a perceived\xa0lack of information" thought to be a "key obstacle for labor market access". Here too I head that \u201cwe need a database of all the initiatives and resources available to help refugees\u201d and "we need to make existing information about getting your paperwork done, how to set up a new business etc".\xa0There are\xa0three underlying assumptions: 1) That some people understand in detail \u201chow the system works\u201d as a whole and 2) That they can transmit that kind knowledge into brochures or documents and that 3) This information material will make the system navigable and penetrable for newcomers. These three assumptions do not hold up to scrutiny and could fill an entire blogpost with reasons as to why. For now I will simply refer you to the Brickstarter report as it is a light, beginner-friendly introduction to some of the issues.', u'entity_id': 5234, u'annotation_id': 10405, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u"We have a similar system, except no forms. You have a project, you post it as a group on the platform and receive your basic tools for cooperation (wikis, tasks etc.), loosely coupled with what the whole community is doing. This is meant to maximize the chance that somebody you don't know will randomly walk in and turn out to be exactly the person needed for that project. People are encouraged to find their own ay to share, under Who Does The Work Calls The Shots \u2013 doers decide.", u'entity_id': 23095, u'annotation_id': 10404, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u"There are a lot of hybrid models that try to go in that direction but preserve some of the old stuff, and I think that is because people are not ready or can't go all the way. Within SENSORICA \xa0all projects are open, everyone can perform tasks, no barrier to value creation, and we use the value accounting system to redistribute the revenue. Networks that have projects formalized as a company, incubators and accelerators for example, don't have a lot of co-creation or exchanges between these entities. Within a value network projects are open and are only loosely formalized. If you have a system to track contributions you'll get a lot of value flows between projects, synergy increases, there is a lot of recycling and sharing of tangible and intangible resources.", u'entity_id': 19801, u'annotation_id': 10403, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u"Are your tools and publications available to people in other countries interested in following your model? I'm a nurse in Ireland involved with various community projects, and believe the street nurses model would be a great fit for here.\nAlso, how do you maintain patient privacy while treating people on the street? Part of my work is looking at care on the move and related design solutions.", u'entity_id': 15524, u'annotation_id': 10425, u'tag_id': 2202, u'entity_type': u'comment'}, {u'quote': u'Important to work in teams:', u'entity_id': 38787, u'annotation_id': 11885, u'tag_id': 2202, u'entity_type': u'post'}, {u'quote': u'Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of "grace conversation"\xa0in Damascus which provides medicine for thousands of families from excess medication at other families, and also "maoayed alrahman"\xa0which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities.\xa0In addition to internal displacement thousands of families are participating with their\xa0homes and food and many other live examples.', u'entity_id': 797, u'annotation_id': 10430, u'tag_id': 1542, u'entity_type': u'post'}, {u'quote': u"As far as I know the reason why you wouldn't see explicit calls for drug transports is because legally you're not allowed to transport but your own. So this is a grey area -people needed to say it's their own if asked at the airport or borders, although technically they couldn't have been arrested on such grounds.. after all they weren't commercializing anything.\xa0Even if the s*** hit the fan,\xa0no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system\xa0and covered by the medical insurance!\xa0For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses.\xa0This is merely a more efficient and structured way of doing the same.\xa0\n\nStill, the network was semi-legal, meaning it operated under no clear incidence of laws. It's\xa0why I remember reading about\xa0Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie\xa0his face never shows.\xa0\n\nFrom looking at the website, it seems the network worked based on collecting forms filled in by patients/family with requests for medicine - it's not clear though how much of the\xa0matchmaking was aided by the technology and how much\xa0was done manually, through Vlad and his network. Anyhow, most people who were part of it didn't know each other IRL\xa0- like Vlad and Valeriu, who were key nodes in the network!\n\n@Sabina_U, lovely to meet you virtually, and hopefully in person soon!", u'entity_id': 17546, u'annotation_id': 13046, u'tag_id': 2203, u'entity_type': u'comment'}, {u'quote': u"I am Sabina Ulubeanu, a 36 years old mother who also like to describe herself as \u201e just a composer\u201d.\nIn the autumn of 2009, at 30,\xa0I suddenly began to feel sick: very weak, short of breath and I became yellow. My daughter was 7, and my son was 2. I was still breastfeeding and thought I was just tired and stressed out.\nWhat came next was an avalanche of\xa0investigations and meetings with doctors form many\xa0hospitals. After ruling out all sorts of terrible diseases and trying different treatments with no success, I went to Vienna where my condition was confirmed: Autoimmune Hemolytic Anemia.\xa0The newest drug for AIHA (Rituximab) \xa0was still not approved in Romania for this rare disease, so I basically moved to Vienna where thet gave it to me, with no positive outcome, and\xa0finally I had my spleen removed and got well.\nIt happened in \xa0March 2012.\nIn November 2012 I was again in Vienna for artistic reasons (and the usual check-up). This is when I read for the first time about the Network of Cytostatics. Everything was familiar to me: the oldest pharmacy in Vienna, the office above Mariahilferstr, but mostly, the struggle to regain one's health....\nIt was too soon for me to get involved, tha trauma was too recent.\n\xa0But in February 2013, a good friend, Simona Tache, shared on Facebook a status about needing someone going to Bucharest from Vienna.\n\xa0It clicked something inside me and I responded.\xa0\nWhat came next was overwhelming.\n\xa0Yes, I travelled\xa0home with medicine, calmly taking them through security and bringing them to Valeriu, the taxi driver that distributed them to the ones in need.\xa0More important was the fact that doing a simple thing, an easy gesture, meant helping someone's health and fighting a system that seemed not to care about the people. Everyone I talked to about the network felt the same: it is the least we can do!\n\xa0I truly believe people have the need to do good, to offer, to help each other.\nThe Network was a way of getting people together for a good purpose. I think it is the main reason it worked so well.\nIt responded the needs of others, but also our own need to give (time/ help/ encouragement).\nMy own personal gain, though, was tremendous. Not only you feel good helping others, but I became very good friends with Vlad Voiculescu, the initiator if the Network, supporting each other in many other so called impossible projects or just knowing we are there at a click or phone call away.\nI got involved because I knew what it means to be helpless against a disease and I will remain involved for as long as I will live, because this Network might not be needed now for cancer drugs, but it created a gathering of great souls that will be for sure needed for many other aspects of our society that need deep and profound healing.", u'entity_id': 698, u'annotation_id': 10433, u'tag_id': 2203, u'entity_type': u'post'}, {u'quote': u'Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of "grace conversation"\xa0in Damascus which provides medicine for thousands of families from excess medication at other families, and also "maoayed alrahman"\xa0which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities.\xa0In addition to internal displacement thousands of families are participating with their\xa0homes and food and many other live examples.', u'entity_id': 797, u'annotation_id': 10432, u'tag_id': 2203, u'entity_type': u'post'}, {u'quote': u'Were all members sufferers or family of sufferers? Was anybody other than Vlad in charge?\nWhen the article about the Network emerged, over 300 people joined the network through the website medicamente-lipsa.ro and found ways to bring home what was missing. Not all of them had sick members of their families. For most, it was just the little they could do in this horrible situation. The website was Med-Alert \u2018s Association\u2019 initiative, where Vlad is a founder, and there were more people involved in obtaining the cytostatics and other medicines. Still, Vlad is the one who got the dice rolling. He has the gift of inspiring others to do good, and it\u2019s contagious. Even though the majority of people involved did not now about each other, and many still do not know until this day, as little contact between the carriers of the medicines has happened. Still, the ones who met in real life bonded immediately and I will always state that the main gain of the Network was the amazing friendships resulting from it.', u'entity_id': 517, u'annotation_id': 10431, u'tag_id': 2203, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 20209, u'annotation_id': 10434, u'tag_id': 1544, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11456, u'annotation_id': 10435, u'tag_id': 1545, u'entity_type': u'comment'}, {u'quote': u'Importantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of\xa0experimentation with new methods in the stories here on Edgeryders\xa0share some sort of\xa0community aspect. This\xa0illustrates a shift to lending authority to a\xa0collective rather than a system or a person. The\xa0collective can consist\xa0of patients, doctors or other caregivers and is likely\xa0a mixture ideally. In Syria the collective is mainly the family, according to Alkasem.', u'entity_id': 18779, u'annotation_id': 10436, u'tag_id': 1546, u'entity_type': u'comment'}, {u'quote': u'but there are no shortcuts...', u'entity_id': 8137, u'annotation_id': 10439, u'tag_id': 1548, u'entity_type': u'comment'}, {u'quote': u'Shortcut waitlinglists\nShortcut ineffective\xa0bureaucrazy\nShortcut documents that separates people and not connecting them', u'entity_id': 11903, u'annotation_id': 10438, u'tag_id': 1548, u'entity_type': u'comment'}, {u'quote': u"My view is that most people living on the camp consider it to be a temporary pit stop before they get to the UK (even if it's 'temporary' for 9 months or more) and so aren't keen on setting up services long term on the camp when they could be in a lorry tomorrow night heading to Britain.", u'entity_id': 39334, u'annotation_id': 11658, u'tag_id': 1547, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11421, u'annotation_id': 10437, u'tag_id': 1547, u'entity_type': u'comment'}, {u'quote': u"4 years old project, we are opening a huge house to help people out of the marge, we will have 20 showers, 150 lockers, medical service, laundries, a pharmecy, and other needed services for this part of people, which is missing\xa0\nSecond pillar is activities: DoucheFlux is 50m2 at the moment, so we work at other spaces, we make activities that promote self esteem for these people, they are totally embedded in the system, they can't escape what is happening about them, they find it difficult to get further, so their mechanism is that they just stop trying, because they don't feel empowered anymore\nDoucheflux helps them to get more self-esteem, but it is difficult because sometimes it feel that we are infantilizing them, and if you do that mistake they don't come anymore\nThe challenge: another way to make social work, so not only people that studied for the social sector. To take the social dream out of the social field and bring it to other fields. Because they are fed up of all the social help, they just want a happy life: it is not only important to have an home, but also to create great moments. To create equal relationships. break racism against the poor.", u'entity_id': 541, u'annotation_id': 10442, u'tag_id': 1549, u'entity_type': u'post'}, {u'quote': u"This reminds me of one of my favourite networked computing stories: back in 1990, the City of Santa Monica (California) launched a service called SHWASHLOCK (SHowers, WASHing machines and LOCKers). The idea for this service had come from a bunch of residents, some of whom were homeless, hanging out on the city's Public Electronic Network (PEN). At the time, of course, there was no Internet: PEN was a civic network accessible locally. SHWASHLOCK is the first public service designed on a computer network that I know of.\nSanta Monica's libraries had terminals connected to the PEN, and some homeless residents\xa0were using the libraries. This is how homeless and homed residents were able to come to share a common hangout, and design together a simple, but very useful service.\xa0\nIt turns out that online spaces are quite good at removing some of\xa0the social markers that make interaction across social groups so awkward (and more power to you, @Laurent_d'Ursel , for overcoming that awkardness!). In the words of Donald Paschal, one of the homeless residents:\xa0\n\u201cPEN is a great equalizer. No one on PEN knew that I was homeless until I told them. After I told them, I was still treated like a human being\u2026 the most remarkable thing about the PEN community is that a City Council member and a pauper can coexist, albeit not always in perfect harmony, but on an equal basis.\u201d\nMore info on SHWASHLOCK and its implications for public participation online:\xa0http://www.cottica.net/2012/08/29/the-computers-of-the-excluded/", u'entity_id': 15043, u'annotation_id': 10441, u'tag_id': 1549, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 727, u'annotation_id': 10440, u'tag_id': 1549, u'entity_type': u'post'}, {u'quote': u"More people use T-shirts, deaf people have a voice. This is also an\xa0awareness project about the isolation the deaf people.\xa0Because only friend's t-shirts can capture the sign language. (through the gloves)", u'entity_id': 545, u'annotation_id': 10443, u'tag_id': 1550, u'entity_type': u'post'}, {u'quote': u'The program was for all students. As far as what was the \u201ccrossover\u201d there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone\u2019s inquiry. Which made the students in control of the situation.\xa0 Which is always of value.', u'entity_id': 27824, u'annotation_id': 10444, u'tag_id': 1551, u'entity_type': u'comment'}, {u'quote': u'The openrampette team worked for weeks in order to plan and deliver a well balanced session that included hard design needs by a user research approach and an easy, neat approach meant for anyone.', u'entity_id': 850, u'annotation_id': 10447, u'tag_id': 1552, u'entity_type': u'post'}, {u'quote': u"Being a scientist and environmentalist from Bangladesh myself, I can appreciate the simplicity of your project. There are of course some challenges associated with it. However, it's a great initiative. Well done!", u'entity_id': 15576, u'annotation_id': 10446, u'tag_id': 1552, u'entity_type': u'comment'}, {u'quote': u"Hello\xa0@IFFAT-E-FARIA, thank you for sharing this project. It's challenging to take action in the face of such overwhelming issues. There's real\xa0strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which\xa0you're exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don't think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.\xa0\nI wish you all the best in your efforts.", u'entity_id': 8154, u'annotation_id': 10445, u'tag_id': 1552, u'entity_type': u'comment'}, {u'quote': u'It\u2019s a virtual reality environment based on audio. The training is completed with practice in the real world until the student becomes fully independent from the simulation. Further explanation of how can be found here. SoundSight attracted the attention of the Italian government and a number of organisations and advocates that offered its support. \xa0Among them were, Cecilia Camellini, Champion Paralympic Swimmer. When asked what she thought of SoundSight, \u201cwith training and effort athletes can improve performance.\u201d', u'entity_id': 701, u'annotation_id': 10448, u'tag_id': 1553, u'entity_type': u'post'}, {u'quote': u"This particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I'd say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.", u'entity_id': 24534, u'annotation_id': 10451, u'tag_id': 1555, u'entity_type': u'comment'}, {u'quote': u'huge camp', u'entity_id': 39328, u'annotation_id': 11669, u'tag_id': 1555, u'entity_type': u'post'}, {u'quote': u'When they do not volunteer with MCCH, volunteers exchange services and small favors through a bank of time : two massages against one hour of English lesson etc.', u'entity_id': 4913, u'annotation_id': 13047, u'tag_id': 2204, u'entity_type': u'post'}, {u'quote': u'In order to continue, we really need to find people with more knowledge, have a better view of the possibilities. We can use the hackathon in Amsterdam for this. There will be many experts present, as well as the chips of Digi.bio. We can try to do some of the experiments we will do with the plasmids, on the chips. Designing or working on the chip itself however, is not the goal or something we have the right skills for.', u'entity_id': 7979, u'annotation_id': 10467, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 764, u'annotation_id': 10466, u'tag_id': 2204, u'entity_type': u'post'}, {u'quote': u'\u201cThis software has the potential to enrich the lives of people who are blind and visually impaired. Everyone can learn this skill, it\u2019s accessible to everyone and when we design for greater accessibility, everyone benefits.\u201d says Irene Lanza. \xa0\xa0\nImproving performance, challenging yourself, to overcome limitations, all of this effects humanity\u2019s growth, expansion and well-being. The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon.', u'entity_id': 701, u'annotation_id': 10465, u'tag_id': 2204, u'entity_type': u'post'}, {u'quote': u"One idea I had was to supplement the clinic with a once-a-week 'Moxa Club' where people could come and learn to safely use moxa on each other. Many more people could be treated simultaneously than is possible with just one acupuncturist; if partners, friends or family came together, they could then continue treatments at home; and the overall message - that people should be learning the skills to keep themselves healthy - would be inherent in the model.", u'entity_id': 11802, u'annotation_id': 10464, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'I am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.', u'entity_id': 19544, u'annotation_id': 10463, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'If you want to integrate activities that help prepare yourself for an acute or creeping emergency I think in many ways going camping, hiking, or something like the boy scouts are helpful to get people started. Basically you get used to the idea of getting by with less infrastructure. This of course does not address the myriad of other issues you may be facing, which can require quite different preparations.', u'entity_id': 13506, u'annotation_id': 10462, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30316, u'annotation_id': 10461, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'Get some fairly decent CAD skills without the cost. And share some of what you make with the rest of us. Onshape.com allows CAD straight from the browser (of a decent computer or notebook). Check out who is behind it, those are some of the CAD Urgestein folks, and everything is fully legit.', u'entity_id': 29543, u'annotation_id': 10460, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29067, u'annotation_id': 10459, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'If you are\xa0able to spin this into a social economy /\xa0professional re-insertion kind of venture where you make a case about skill training, you might be able to access resources easier\xa0than under artistic education or creative industry.. especially if\xa0Greece has some subsidies/ funding left for that field.', u'entity_id': 9449, u'annotation_id': 10458, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 744, u'annotation_id': 10457, u'tag_id': 2204, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 20113, u'annotation_id': 10456, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'peer-to-peer help beats the living daylight out of top down teaching.', u'entity_id': 6759, u'annotation_id': 10455, u'tag_id': 2204, u'entity_type': u'comment'}, {u'quote': u'Our key test is that people THEMSELVES set their agenda. We don\'t work with a curriculum. And we don\'t have teachers. Instead, we ask participants to help each other - and because they\'re all working on "cool stuff" not "boring stuff" then people are usually happy to help - and maybe gain ideas, skills and expertise from the experience.', u'entity_id': 1710, u'annotation_id': 10454, u'tag_id': 2204, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 10453, u'tag_id': 2204, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 10452, u'tag_id': 2204, u'entity_type': u'post'}, {u'quote': u'Because individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and/or more people can be seen.', u'entity_id': 13679, u'annotation_id': 13048, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'The questions you raise in both posts seem to fall in to a number of headings: training/upskilling, logistics/coordination, personal resilience. These issues are core\xa0to the central enquiry of\xa0OpenCare if we are to gather insights to shape a "DIY welfare" network\xa0and they resonate with other questions raised in other posts shared on the Edgeryders platform. I could see a useful session - drawing on what you\'ve learned and co-enquiry around the questions you\'ve outlined\xa0- making a meaningful contribution\xa0to the Open Village event in October. I can also see that it could sit well in either the Architectures of Love theme or the Working and Living Well Together curated by @Woodbinehealth.\xa0It\'s natural that there\'ll be overlap across all the themes of the festival. @Noemi - what are your thoughts on this?', u'entity_id': 14386, u'annotation_id': 10495, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'how can training\xa0be provided that meets unkown needs?', u'entity_id': 6470, u'annotation_id': 10494, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 773, u'annotation_id': 10493, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'I look forward to continuing the conversation! \xa0As for practical things, I think a larger question we have is the role of networks in creating autonomy, how to build structures that increase autonomy not just something that replicates Silicon Valley mindsets. \xa0Also for skills, maybe something aroudn the very act of giving skills. \xa0How we plan out our skill shares and what are the main purposes (i.e beyond just passing on knowledge).', u'entity_id': 20144, u'annotation_id': 10492, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'At Woodbine, we are continuing to develop a path toward health autonomy. We are looking to meld many different modalities of health. \xa0We have been experimenting with different projects and finding ways to build community. We\u2019ve had a garage gym with weekly fitness classes, open hours in our Resource Center, and ongoing public workshops. Our series of \u201cskill shares\u201d, has included subjects from acupuncture to foraging urban medicinal plants, to workshops on first aid and large discussions questioning what communal health really requires. Autonomous mental health infrastructure seems to be the most pressing immediate need of our community. This is a key place we are focusing our energies at the moment. We find that the act of sharing responsibilities, allowing for new innovation, and practicing vulnerability with our comrades are the first steps to addressing these larger questions of health and care.', u'entity_id': 6376, u'annotation_id': 10491, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'To organize workshops and lecturers to train women practical skills , make fund for\xa0scholarship to help women to get\xa0education, \xa0improve skills in order to obtain job easier, economically become independent, or\xa0\xa0learn how they can work from home', u'entity_id': 16621, u'annotation_id': 10490, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29086, u'annotation_id': 10489, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'What can you make with old plastic bottles? A vase? A flowerpot? \u2026 an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they\u2019ve helped people to install these units-- which don\u2019t need electricity to function-- in more than 25,000 households in developing areas of the country.\n\u201cMost people live in tin huts\u2026 in the summer, it\u2019s like being in sauna in the Sahara\u201d', u'entity_id': 33744, u'annotation_id': 10488, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u"were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily\xa0and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough.\xa0Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped\xa0you a little!", u'entity_id': 26945, u'annotation_id': 10487, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 807, u'annotation_id': 10486, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'Our goal is to examine what health autonomy would look like and how to begin to build it for ourselves here in New York city. We are beginning by providing ways to interact with neighbors, to think of health and care as a communal process, and becoming a point of aggregation where people can come together and share resources. We currently facilitate health related skill shares, create concrete ways to navigate the overwhelming health infrastructure that exists while lessening our dependence on it, in order to build an autonomous health community.', u'entity_id': 5886, u'annotation_id': 10483, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'ng\xa0training for non-medical workers,\xa0prevention coupled with basic treatment..', u'entity_id': 24022, u'annotation_id': 10482, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'The health track is composed of a mix of health professionals and those with informal training in various health practices. \xa0We place an emphasis on re-creating a sense of community wellness and the dissemination of skills', u'entity_id': 521, u'annotation_id': 10481, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u"Thanks, @Alberto. You coined it perfectly '\xa0This is about patients\xa0being\xa0researchers, and viceversa'. Actually we try to avoid terms like patients (https://en.wiktionary.org/wiki/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.", u'entity_id': 26952, u'annotation_id': 10480, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u"I read this and also the full project description, and I see it ties nicely to Rune's question from before:\xa0what it would be like for patients to work side by side with researchers and makers. But to be sure: are you working on a makerspace or on a series of activities to happen in one or more existing spaces? And where?", u'entity_id': 10548, u'annotation_id': 10479, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'e. There will be mentors (physiotherapists, engineers and designers etc.) and together we will create solutions to personal needs in form of assistive devices.', u'entity_id': 720, u'annotation_id': 10478, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 29067, u'annotation_id': 10477, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'The question is if more people in the camp would share the same enthusiasm. Ideally, a craftsman could be found to take the role of a tutor to guide the others into the basics of building. On our last visit in the camp we learnt that the the camp\u2019s organizers are taking help of one of the refugees who used to be a tailor. He now has his working space (a table with a sewing machine) at the intern clothes depot and helps fixing the garments before they\u2019re given out.', u'entity_id': 703, u'annotation_id': 10476, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.', u'entity_id': 737, u'annotation_id': 10475, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 17588, u'annotation_id': 10474, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11456, u'annotation_id': 10473, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'If you have ways that you formally share your experiences with other groups so they might learn and begin to try these things for themselves in their particular regions? Would love to know more about any or\xa0all of these things.', u'entity_id': 21004, u'annotation_id': 10472, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'micro-welfare and mutual support include a lot of different situations (child care / homework/ vacations, home trouble fixing, information, shopping for the neighbor, shared purchases, savings, medical support, emergency support, skills sharing\u2026)', u'entity_id': 743, u'annotation_id': 10471, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'The self care training was mostly around sharing best practice. Asking groups to share ideas around how they unwind, stress reduction, how they notice stress in themselves and others.', u'entity_id': 16022, u'annotation_id': 10470, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'\u201cWe were not talking about the differences between student areas. It was interesting seeing how there was a lot of variation in how interviews were conducted in the different groups as well as within the group were different. I think what I found was that we had very different styles of leading interviews and how different results. I realised I am used to lead an interview and how it has become my only way for me. And it was really interesting to see there are different kinds of ways to lead an interview. I learned how to lead interviews in design thinking...you are asking for stories and ask 5 times why. It\u2019s completely differnt thing when trying to understand a person. It was a very good experience.', u'entity_id': 494, u'annotation_id': 10469, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'\u201cI think it is always important to find new symbiotic relationships between people. One Project I\u2019ve come across is one in which there were two groups: one group who wanted to learn English but didnt have connections to do so, and the other group was old lonely group from America. These two groups were able to talk to each other via skype. The Old people had the joy of talking to somebody who was interested in learning. And the young people learned English. It\u2019s very nice to see people caring about each other that way.\u201d', u'entity_id': 494, u'annotation_id': 10468, u'tag_id': 1557, u'entity_type': u'post'}, {u'quote': u'ndeed distributed decision making processes\xa0(cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them),\xa0the autonomy of each team and individual in his/her area of competence and responsibility\xa0(where each person\xa0is sometimes leader\xa0and sometimes follower)\xa0combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones\xa0to move forward in the right direction.', u'entity_id': 24331, u'annotation_id': 10484, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'by combining forces with someone that knows how to farm we stand to gain lots more than if go at it on our own. So I would say find local farmers to source your food from and co-produce together.', u'entity_id': 11122, u'annotation_id': 10485, u'tag_id': 1557, u'entity_type': u'comment'}, {u'quote': u'How to do skills mapping in  a way that is not anxiety inducing? Also: how do we channel our efforts in a way that is conducive to building something (we now call it the OpenVillage), and not let the momentum go, build something out of looking in the same direction?\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentstoring information\n\n  \n    \n      Cancel\nSave', u'entity_id': 38811, u'annotation_id': 11757, u'tag_id': 1918, u'entity_type': u'post'}, {u'quote': u'Might it be that work that takes place outside of employment is more likely to be experienced as meaningful? And, if so, why? Several possible answers exist. The psychologist Edward Deci famously demonstrated that\xa0being paid for a task tends to decrease our intrinsic motivation, a phenomenon he explains in terms of the shift of the \u2018locus of motivation\u2019. Meanwhile, as I argued in\xa0\u2018The Future We Deserve\u2019, the logic of maximising productivity has made industrial-era employment an unprecedentedly anti-social form of work. More practically, though, are there ways we can build a better relationship between meaningful work and our ability to pay the rent?', u'entity_id': 493, u'annotation_id': 10496, u'tag_id': 1558, u'entity_type': u'post'}, {u'quote': u'On 3: agreed to an extent. There is a lot of wickedness in the biotech industry. Research is very slow and expensive, almost as extreme as it gets. The dynamics do change at these extremes, I think, and that asks for a different strategy. To break through, accumulating small wins in an iterative way might not be ideal.\xa0Reaching a particular benchmark that actually matters big time (eg. the first open source production protocol for insulin) perhaps would be.', u'entity_id': 12977, u'annotation_id': 10500, u'tag_id': 1560, u'entity_type': u'comment'}, {u'quote': u'I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it\u2019s Headspace).', u'entity_id': 36387, u'annotation_id': 11696, u'tag_id': 1559, u'entity_type': u'post'}, {u'quote': u'curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.', u'entity_id': 24534, u'annotation_id': 10499, u'tag_id': 1559, u'entity_type': u'comment'}, {u'quote': u'I have never been part of such a group with such speedy process of opening up - even when deep conversations arise, we had been traversing a sort of coolness, then sociality, then friendliness, and more and more into deeper discussions. That stood for both personal and professional contexts; for both one on one conversations and group conversations.\xa0How do you go through this curve collectively, and\xa0so quickly, is probably really an art.\nAre we talking one day workshops?\nFamiliar faces or strangers?\nAnd how large a group is optimal?\nThanks @ewoudvenema for sharing so generously.', u'entity_id': 21318, u'annotation_id': 10498, u'tag_id': 1559, u'entity_type': u'comment'}, {u'quote': u'True disruption, then, might not look like the world-spanning, high-octane revolutions beloved of the senior executives. It might look like slowness; like quietness; like a return to engagement at the scale of the human being. It might just turn out that old is the new new.', u'entity_id': 549, u'annotation_id': 10497, u'tag_id': 1559, u'entity_type': u'post'}, {u'quote': u'At the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to\xa0fail\xa0because they have no social or political capital to diminish, except with the people they work with directly.\xa0This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece.', u'entity_id': 19227, u'annotation_id': 10502, u'tag_id': 1561, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20496, u'annotation_id': 10501, u'tag_id': 1561, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 856, u'annotation_id': 10506, u'tag_id': 1562, u'entity_type': u'post'}, {u'quote': u'We started indeed with a small group of people. The city of Ghent used the theory of transition management to create a strong group (\u201carena\u201d) to start reflecting on the future. We explained this in this article: http://www.polisnetwork.eu/uploads/Modules/PublicDocuments/thinking-cities-launch-issue-web2.pdf \xa0(page 24)', u'entity_id': 33778, u'annotation_id': 10505, u'tag_id': 1562, u'entity_type': u'comment'}, {u'quote': u'We started indeed with a small group of people. The city of Ghent used the theory of transition management to create a strong group (\u201carena\u201d) to start reflecting on the future. We explained this in this article: http://www.polisnetwork.eu/uploads/Modules/PublicDocuments/thinking-cities-launch-issue-web2.pdf \xa0(page 24)', u'entity_id': 33778, u'annotation_id': 10504, u'tag_id': 1562, u'entity_type': u'comment'}, {u'quote': u"When we\xa0set out to solve a complex problem in our organisation, we\xa0start with small actions that change the context a little. Small experiments that can fail, but the lessons of which can scale big. A great example in government is a challenge this month of my own city where they will distribute 1,300,000 euros among civilian projects that aim to have a positive impact on the city. Citizen vote will account for 70% in the decision where the money goes. I don't think popularity contests are the best way to do this either, but it's a beginning and will change the playing field.\nYet this is already at the interface with the public, at the policy level. Most\xa0possible small experiments I can think of\xa0would all very likely fail at another point: the government itself. The\xa0processes, people, time perception, incentive structures, ... Seperately these things\xa0are not huge problems, but together they form a problem where there are little starting points to start solving it. I'd say the most important problem for\xa0the government to solve today, is the government itself, not the policies\xa0it produces. So we need small actions in that aspect, eg. hiring a few recruiters that recognise the skills needed to implement change. And then you can sustainably keep producing\xa0good policy, even parallel while changing the internals.", u'entity_id': 30318, u'annotation_id': 10503, u'tag_id': 1562, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 10507, u'tag_id': 1563, u'entity_type': u'post'}, {u'quote': u'After the first submission, our original project "doc.doc" (https://edgeryders.eu/en/node/7847) got some feedbacks and contributes that conviced us to implement those inspirations that eventually\xa0turned out the early project in ResQ!\n\nIn particular was pointed out how the core concept of our proposal could have been way more effective if applied in critical healthcare context (such as\xa0emergency hospitals and refugees reception centers) where the language barriers affect the quality and efficacy of the medical treatment.\n\n\xa0Following is the brief description of our updated project, ResQ, we would love to hear your thoughts about it!\n\n\n\n\n\tOur project in a tweet\n\n\n\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.\n\n\n\n\n\tProblem that our project\xa0is willing to solve\n\n\n\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.\n\nThe current way of working shows the following problems:\n\n\n\n\n\tThe language barrier prevent a proper communication between the physician and the patient. Is usually delegated to the patients the duty of providing the accurate information about their health condition every visit.\n\n\n\tThe missing digitalization of the gathered health data and the consequent discontinuity of the healing process.\n\n\n\tThe limited precision of the anamnestic research due to the high number of patients and the short time available.\n\n\n\n\n\tFinal User, individuals and\xa0community target\n\n\n\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as emergency hospitals and refugees reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.\n\n\xa0https://www.youtube.com/embed/MZSMi316E-Y\n\n\n\n\n\tSolution, brief description of the project\n\n\n\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.\n\n\nResQ-board.jpg2045x2500 640 KB\n\n\n\n\n\n\tTechnologies we will adopt\n\n\n\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.\n\n\n\n\n\tWebsite', u'entity_id': 866, u'annotation_id': 13051, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u"I hope you will get the touring exhibition to have a european leg, and come through Lausanne! \xa0To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help!\n\nI left a comment with a few points this morning on the page with\xa0the documentary, but just to ask one more silly question: was it\xa0actually possible to do any fly-fishing on the Bagmati river?? \xa0(are there many fish to catch?? \xa0are they edible?) \xa0\n\nI did some flyfishing long ago in the great northwest and Montana, with great pleasure, but\xa0don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)...\n\nThanks again for sharing, and looking forward to further discussions!", u'entity_id': 21501, u'annotation_id': 13050, u'tag_id': 1565, u'entity_type': u'comment'}, {u'quote': u'get positive feedback from people using them. So we continue developing more games for the bind. :-)\n\nWe\u2019ve also created a smartphone app called ICSee for people with low vision that applies special filters to the video captured by the phone\u2019s camera and allows users to read a restaurant menu or signs on the door. It\u2019s also available for free and under open source licences on Google Play..', u'entity_id': 528, u'annotation_id': 13049, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u"Il tuo progetto in un tweet*\n\n\n\n\n\n\tDoc.doc \xe8 la soluzione per mettere in contatto medici che seguono lo stesso paziente, fornendo loro la panoramica pi\xf9 completa possibile.\n\n\n\tBisogno o problema che il tuo progetto cerca di risolvere*\xa0\n\n\n\n\n\n\nSempre di pi\xf9 patologie complesse necessitano della collaborazione tra molti specialisti della cura.\n\nA questi diversi professionisti manca per\xf2 la possibilit\xe0 di comunicare e condividere informazioni su una piattaforma dedicata.\n\nL\u2019attuale procedura di lavoro evidenzia i seguenti problemi:\n\n\nDelega al paziente la responsabilit\xe0 nel fornire le corrette informazione relative al proprio caso.\nRende complicato il confronto fra i diversi specialisti riguardo aspetti controversi delle diagnosi.\nNon permette ai medici di essere aggiornati sugli sviluppi clinici di un determinato paziente, se non all\u2019incontro con lo stesso.\n\n\nDoc.doc fornisce quindi una piattaforma tramite la quale i medici possano raccogliere e informarsi autonomamente riguardo i pazienti in cura.\n\nInoltre la progettazione UX \xe8 stata specificatamente orientata alla facilitazione della comunicazione tra medici, semplificando le azioni che permettono di interagire con un collega tramite una telefonata, un messaggio istantaneo o un\u2019email.\n\n\n\n\n\tUtente finale, individui e/o comunit\xe0 di riferimento*\n\n\n\n\n\n\nIl prodotto \xe8 pensato per i medici, ma i maggiori benefici andranno ai pazienti.\n\nDoc.doc infatti migliora la comunicazione tra i vari operatori sanitari, ottenendo come risultato un miglioramento delle condizioni lavorative degli stessi (pi\xf9 pianificazione, pi\xf9 chiarezza, quadri clinici completi e organizzati), ma soprattutto consentendo ai pazienti dei medici che faranno parte del sistema doc.doc, di essere seguiti da un network di specialisti sempre in contatto e sempre aggiornati sui vari mutamenti dei quadri clinici su cui stanno lavorando.\n\n\n\n\n\tSoluzione, breve descrizione del progetto*\n\n\n\n\n\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\nInoltre, in una fase successiva, sar\xe0 possibile strutturare doc.doc come strumento di ricerca pura, grazie all'aggregazione di dati demoscopici dei pazienti e alla loro\xa0categorizzazione per patologia.\n\n\n\n\n\tTecnologie utilizzate o che vorresti utilizzare*\n\n\n\n\n\n\nLo strumento che abbiamo progettato si esprimer\xe0 attraverso un\u2019applicazione mobile per ambienti Android e iOS, che verr\xe0 quindi sviluppata secondo i linguaggi di programmazione di riferimento (verosimilmente verranno utilizzati rispettivamente Java e Objective-C per realizzare app native). Abbiamo privilegiato questo tipo di approccio per rendere l\u2019utilizzo del software il pi\xf9 immediato possibile. E\u2019 comunque ipotizzabile lo sviluppo di una web app responsive in HTML5 che consenta un utilizzo trasversale multiplatform.\n\nIl servizio cloud potr\xe0 essere sviluppato in NodeJS, con basi dati MongoDB e MySQL.\n\n\n\n\n\tSito web (o social network)\n\n\n\n\n\n\nIn fase di pianificazione.\n\n\n\n\n\tLicenza, che pensi di utilizzare\n\n\n\n\n\n\nOpensource\n\n\n\n\n\tStato attuale del progetto*\n\n\n\n\n\n\nIl progetto attualmente consta in un prototipo sviluppato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\n\n\n\n\n\tConsiderando il tuo progetto, evidenzia le fasi che hai raggiunto con il tuo progetto.\n\n\n\n\n\n\n1.0 Scoperta\n\n1.1 Osservazione del contesto\n\nDoc.doc nasce dalla constatazione di quanto siano spesso frammentate le informazioni che i diversi specialisti possiedono riguardo un certo paziente. Attraverso un processo di ricerca abbiamo evidenziato come un approccio olistico, che a colpo d\u2019occhio fornisca un quadro clinico completo, comporterebbe indubbi vantaggi a medici e pazienti.\n\n1.2 Acquisizione di idee, spunti, intuizioni\n\nLo spunto iniziale che ha dato l\u2019avvio al progetto \xe8 scaturito da una serie di interviste condotte tra medici e pazienti. Questi ultimi in particolare lamentavano la scarsa preparazione del medico rispetto al loro specifico caso clinico, delegando pertanto al paziente stesso, la responsabilit\xe0 nel fornire informazioni dettagliate circa la patologia da affrontare.\n\n1.3 Definizione del problema\n\nIl problema che abbiamo affrontato pu\xf2 essere definito come una carenza di comunicazione. I diversi professionisti della cura non possiedono, ad oggi, uno strumento semplice e veloce che possa tenerli aggiornati rispetto alla progressione clinica di ogni loro paziente. Le informazioni sanitarie sono disgregate e appartengono allo specialista che le ha prodotte attraverso la propria visita. Queste informazioni tendenzialmente non hanno altro modo di essere condivise, se non attraverso il paziente stesso, cui si delega il compito e la responsabilit\xe0 di fornire tali informazioni allo specialista successivo.\n\nDoc.doc si propone essenzialmente come un aggregatore di informazioni, un unico database medico nel quale possano essere convogliati e organizzati i dati dei pazienti che si hanno in cura. In questo modo il medico pu\xf2 affrontare ogni nuova visita avendo gi\xe0 chiara l\u2019anamnesi pregressa del paziente in questione. Doc.doc inoltre fornisce tutti i contatti degli specialisti che hanno condotto una determinata visita in precedenza, e rende estremamente semplice (un clic) la possibilit\xe0 di mettersi in contatto con un collega per richiedere un chiarimento o un parere rispetto ai dettagli di una certa una cartella clinica.\n\n2.0 Definizione\n\n2.1 Analisi delle soluzioni\n\nIn seguito ad una estesa sessione di una particolare forma di brainstorming, il brainwriting, sono stati vagliati diversi possibili approcci per affrontare il tema proposto dal bando OpenCare. Questi sono stati categorizzati in modo sistematico secondo la tecnica detta delle 4Cs (le quattro\u201dc\u201d: components, characteristics, challenges, characters) e quindi circoscritti in macro-aree che puntavano ad un certo specifico orientamento verso la risoluzione delle problematiche riscontrate in ambito sanitario.\n\n2.2 Ideazione del concept\n\nIn seguito ai risultati scaturiti dalle tecniche di brainstorming, \xe8 stato realizzato un questionario da sottoporre ad un certo numero di pazienti, parenti dei pazienti e professionisti della cura (non solo medici, ma anche infermieri, farmacisti, fisioterapisti etc\u2026).\n\nQueste interviste si sono rivelate cruciali nel definire il percorso che doc.doc avrebbe intrapreso.\n\nInfatti, abbiamo riscontrato presso la maggior parte dei pazienti intervistati, una sostanziale insoddisfazione riguardo i processi di comunicazione con i propri medici. In particolare, nel caso di patologie particolarmente complesse, dove \xe8 necessario il coinvolgimento di molteplici specialisti, spesso i medici coinvolti sono parzialmente o totalmente all\u2019oscuro riguardo i progressi dei colleghi nei confronti di uno specifico aspetto nella cura della patologia. La comunicazione di queste informazioni, avviene, ma quasi esclusivamente per mezzo del paziente, il quale \xe8 costretto ad assumersi la piena responsabilit\xe0 dell\u2019accuratezza e completezza delle informazioni fornite.\n\n2.3 Proposta della soluzione\n\nIn seguito alla ricerca svolta, \xe8 stato quindi logico cominciare a pensare alla progettazione di uno strumento gestionale che permettesse ai medici di avere immediatamente disponibili tutte le informazioni concernente un certo paziente, comprese le informazioni di contatto dei colleghi responsabili di una certa visita.\n\nAbbiamo cos\xec progettato uno strumento gestionale che facilita l\u2019organizzazione degli appuntamenti di un medico, ordina in maniera chiara le cartelle cliniche dei pazienti per tipologia e cronologia, permette in un clic di contattare un collega tramite telefono, chat o email, infine rende pi\xf9 efficiente la visita stessa poich\xe9 doc.doc consente al medico curante di aggiornarsi circa i progressi del proprio paziente nei minuti precedenti alla visita.\n\nDoc.doc infatti pu\xf2 essere programmato per concedere uno spazio di tempo (tendenzialmente 10 minuti) tra una visita e l\u2019altra, che permetta al medico di prendere visione della cartella clinica del paziente che sta per incontrare.\n\n3.0 Sviluppo\n\n3.1 Progettazione e prova del prototipo\n\nDoc.doc allo stato attuale consiste in un prototipo interattivo realizzato attraverso la piattaforma proto.io.\n\nPrima di ottenere questo risultato abbiamo sostenuto una approfondita analisi UX che ci ha consentito di effettuare scelte precise circa lo sviluppo di certe funzionalit\xe0.\xa0In particolare, attraverso tecniche di Brainwriting e alcune empathy map abbiamo circoscritto l\u2019ambito di lavoro.\n\nA seguito di alcune interviste di orientamento con pazienti e professionisti sanitari abbiamo definito ulteriormente gli obiettivi del progetto, concentrandoci su una \u201cone primary task\u201d, che nel caso di doc.doc consiste nell\u2019aggregazione semplificata dei dati di ogni paziente. Considerando quindi alcuni ipotetici scenari di utilizzo del nostro servizio (presso specialisti\xa0o medici di base, in studio o in visita a domicilio etc\u2026) abbiamo sviluppato una prima logica di user flow e infine la sua realizzazione grafica interattiva, della quale si pu\xf2 avere una tangibile esperienza d\u2019uso qui: http://bit.ly/2oOXbmK (una volta scaricata l'intera\xa0cartella \xe8 sufficiente aprire il file index.html con il proprio browser, meglio se Chrome).\n\nInoltre in seguito allo sviluppo del prototipo \xe8 stato condotto un piccolo usability testing\xa0che ha evidenziato piccole problematiche, immediatamente risolte con il rilascio della versione successiva, di cui si pu\xf2 prendere visione al link sopracitato.\n\n3.2\xa0Prova della fruibilit\xe0\n\nE\u2019 stato condotto un piccolo usability testing, parzialmente moderato, che ha sostanzialmente confermato tutti gli obiettivi di usabilit\xe0 stabiliti a monte. In particolare i nostri utenti test sono stati, per la maggior parte, in grado di portare a termine le operazioni richieste, quali: 1. Consultare una cartella clinica, 2. Consultare la rubrica pazienti e professionisti, 3. Aggiungere un nuovo appuntamento, 4. Contattare un collega. In questa fase abbiamo ritenuto prematuro considerare ulteriore metriche di controllo oggettive quali tempi e statistiche di errore, concentrandoci piuttosto su misurazioni di gradimento soggettive e mantenendo come unico conteggio obiettivo il numero di operazioni portate a buon fine.\n\nSono stati riscontrati alcuni problemi nella fruibilit\xe0 dei dati della cartella clinica e delle funzionalit\xe0 ad essa collegate (\xe8 infatti possibile anche iniziare una conversazione\xa0con un collega). L\u2019organizzazione dei contenuti di quella determinata schermata \xe8 stata quindi modificata sulla base dei feedback ricevuti, cos\xec come l\u2019intero look&feel dell\u2019applicazione \xe8 stato rivisto coerentemente rispetto alle modifiche apportate.\n\n4.0 Rilascio\n\n4.1 Completamento del prodotto/servizio\n\nIl prototipo \xe8 gi\xe0 stato testato, ma andrebbe ulteriormente verificato su un campione pi\xf9 esteso di utenti, seguito eventualmente da un A/B testing.\n\nConclusa la fase di usability testing sul prototipo, si proceder\xe0 quindi con lo sviluppo di programmazione vero e proprio, la\xa0cui funzionalit\xe0\xa0verr\xe0\xa0verificata\xa0ad ogni milestone raggiunta.\n\nInfine, verranno concepite strategie di distribuzione, idealmente con il coinvolgimento delle ASL locali, per permettere un capillare ed effettivo utilizzo del servizio.\n\n4.2 Rilascio finale\n\nE\u2019 in fase di definizione una timeline di sviluppo che presenti le milestone necessarie al completamento del prodotto, secondo specifiche tempistiche.\n\n4.3 Produzione\n\nIl team di sviluppo tecnico \xe8 ancora da definirsi, ma stiamo valutando una collaborazione con I-SEE\xa0(http://www.i-seecomputing.com), specialisti nell produzione di software in ambito medico/ sanitario.", u'entity_id': 33729, u'annotation_id': 13038, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 781, u'annotation_id': 10522, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'ResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.', u'entity_id': 33817, u'annotation_id': 10521, u'tag_id': 1565, u'entity_type': u'comment'}, {u'quote': u'Tutto \xe8 nato da una nostra esperienza\nMonica: \u201cNicoletta? Andiamo a mangiare una pizza?\u201d\xa0\nNicoletta: \u201cCerto! Prenoto per due al solito posto dove puoi mangiare anche tu?\u201d\xa0\nM.\u201cOk!\u201d.\nRistoratore: \u201cBuona sera Signore, avete prenotato?\u201d\nN. \u201cS\xec, per due; nome Nicoletta\u201d. -\nEccoci, sedute al tavolo, scegliamo dal menu la pizza e il cameriere viene a prendere l\u2019ordine.\xa0\nN.\u201cPer me una prosciutto e funghi\u201d\nM. \u201cIo invece..premetto: sono intollerante al glutine e al lattosio...\u201d il cameriere annuisce \u201c...ho letto sul menu che oltre alla pasta senza glutine potete sostituire la mozzarella di latte vaccino con quella di riso...\u201d\nC.\u201cS\xec signora\u201d\xa0\nM.\u201dBene, quindi per me una pizza con farina senza glutine, la mozzarella di riso, crema di zucca e porcini\u201d\nC. \u201cDa bere?\u201d\nN. \u201dUna birra per me!\u201d\nC.\u201dE lei?\u201d\nM.\u201dIo? Che cosa posso bere che non sia acqua?\u201d\nC.\u201dAbbiamo due birre senza glutine\u201d\nM.\u201dQuali?\u201d\nC.\u201dLa Daura e la Peroni\u201d.\nGiro lo sguardo verso Nicoletta con un\u2019espressione rassegnata e penso \u201d...sempre quelle...\u201d\nPassano pochi minuti e al tavolo si ripresenta il cameriere dicendo che la crema di zucca \xe9 terminata e che il pizzaiolo propone una crema di porro in sostituzione. Sgrano gli occhi e penso che non sia proprio il mio giorno fortunato e che la pizza, forse, non avrei dovuto mangiarla. Ho fame per\xf2 e voglio trascorrere una serata serena insieme alla mia amica. A malincuore accetto la proposta del pizzaiolo - \u201cChiss\xe0\u201d.\nArriva la pizza e a quel punto, mi assale lo sconforto pi\xf9 profondo e un senso di disagio che non avevo mai provato; guardo la mia pizza, poi quella di Nicoletta, poi di nuovo la mia, la sua, la mia...\nNon ce la posso fare...assaggio...pare buona...ho tanta fame...dai che mangio...fame, fame, fame: mangio!\nN. \u201cMonica? Mi fai assaggiare?\u201d\nM.\u201dCerto!\u201d\nN.\u201d...Mmm...il sapore non \xe8 male ma questa non \xe8 una pizza! Ha una strana consistenza, si presenta come una pietanza da ospedale. \xc8 proprio triste...\u201d\xa0\nM.\u201c...Gi\xe0...\u201d\n---------------------------------\nQuesta serata per Monica e Nicoletta non \xe8 stata l\u2019unica; altre l\u2019avevano preceduta e altre ancora ne seguirono.\nAd ogni occasione conviviale, presso qualsiasi locale di ristorazione, lo schema che si ripete pare essere sempre lo stesso:\n\nMonica elenca ad alta voce al cameriere le sue intolleranze,\xa0\nil cameriere annuisce puntualmente,\xa0\nMonica\xa0 si barcamena nella lettura di menu labirintici (a volte privi dell\u2019elenco degli allergeni)\ndalla cucina arriva l\u2019avviso che l\u2019alimento richiesto non \xe8 disponibile\nMonica si accontenta di \u201cci\xf2 che propone la cucina\u201d nella speranza di non entrare in contatto con quelle molecole malsane che le provocano un sacco di dolori\n\n\nE in tutto questo? Nicoletta osserva esterefatta e non si capacita di quanto tutto questo provochi un disagio alla sua amica e a tutti quelli che, come lei, hanno allergie e intolleranze alimentari. All\u2019interno dei locali queste persone (malate) vengono spesso confuse con altri clienti che seguono diete vegetariane o vegane frutto di una libera scelta personale e non ad uno stato di salute.\xa0 \xa0\nQui in allegato la pizza di Monica', u'entity_id': 824, u'annotation_id': 10520, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u"I'm very interested in approaches where for instance the system knows when is the right time to ask you for the data, or in general where the data entry becomes organic, integrated in your routine, almost happening in the background.", u'entity_id': 15751, u'annotation_id': 10519, u'tag_id': 1565, u'entity_type': u'comment'}, {u'quote': u'To look at care as a life practice. We take a health issue like histamine intolerance as a concrete example for which it is clear and mandatory that food intake and lifestyle are determining the severity of the health condition. In defining \u201cCare\u201d I would like to work around the question: Is our diet and lifestyle shaped around products or can we brake out of this path and empower ourselves in designing products - an app in this case - that help us define which food and lifestyle combination is better for each unique person? Can a tool help eventually finding one\'s way to still eat or drink that food by combining it differently and so on?\n\nNeed or problem you are attempting to solve*\nHow can one learn to listen to her body and track, compare, and be systematic with the help of technology. The idea is to help people to be more in touch with their body rather than alienate from it. How to empower users with a system that guides them in tracking aliments and environmental reactions, observe cross behaviors, and share that information with other users. A guided digital diary can be very helpful in a case like histamine intolerance where the combination of foods, cooking and food preservation, as well as lifestyle, and environmental conditions, all play a great role, in an intricate and complex combination. Histamine intolerance has been chosen as a concrete case to work with because it\'s a health condition I suffer from myself and for which I would like to have a tool that helps me deal with it. From a developer standpoint it will be a tool that I can test in first person. Next to it, there are more and more friends who have found they are affected by this condition, so it will be as well easy to find a group of people for preliminary usability testing.\n\u200bBeneficiary, single person and/or community*\nBeneficiary will be both single persons and the community in a mutual exchange between users affected by the health condition and those who want to participate and make use of the app like doctors, researchers, practitioners and more.\n\nSolution, brief description of the project*\nA first version of the app will be essentially A GUIDED FOOD DIARY.\nObtain information and make your own list of safe foods, referring to a build-in food list of: high-histamine, anti-histamine, anti-inflammatory and cross- check it with a list of typical symptoms and reactions.\xa0The idea is to allow users to add #tag foods, behaviors, and symptoms with the intention to generate knowledge and work in the direction of creating a community and use data-analysis for a second version of the app.\xa0The food diary can help create awareness and be a systematic tool in finding out which foods provoke reactions and to which degree.\xa0It can help to expand one\'s diet, follow elimination diet systems, help re-introduce single foods, and monitor whether these provoke any reactions or not. It can help apply more logic to why certain symptoms occur and when. It can be used to help one\'s general practitioner or specialist in doing more targeted testing. It can be a great support in case of multiple intolerances as well.\n\u200bTechnologies already adopted or that you are planning to adopt*\nWe are a two-women team whit design and development skills. We will start with IOS , and consequently adapt for Android. \n\u200bWebsite (or socials)\nWe are planning a dedicated website that will follow all the steps of the project.\n\u200bLicense, that you are planning to use\nOpen-source\nCurrent status/stage of the project\n\u200b1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community.\n2) Observing the context - UI-UX and Algorithms, comparative analysis and design: by looking at existing apps, like: "Food Intolerances", "All I Can Eat", "Your food Intolerance", and other food intolerance apps, as well as other apps on different health issues, as for example, the menstrual cycle tracking app, \u201cClue\u201d.\n\n3) Sketch out of a wireframe flow for a testable minimum viable product\xa0or prototype. The wireframe will also address issues like users privacy and handling of private health information', u'entity_id': 837, u'annotation_id': 10518, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'A lot of research-based apps and services are available today that help in better understanding the symptoms of Parkinson\u2019s. Apps like mPower and Parkinson\u2019s Central are monitoring the patient\u2019s health from their rdaily movements and tasks along with daily or weekly surveys. With our prototype, we not only propose to help in tracking symptoms to better understand the disease but we also want to help the patient in the best way possible.', u'entity_id': 768, u'annotation_id': 10517, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'We discussed smartphones: widespread devices that are more sophisticated than the computers that sent people to the moon a few decades ago.', u'entity_id': 732, u'annotation_id': 10516, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'After a very long research phase me and my team from Newcomer now have conceptualized a smartphone-app, which familiarizes not only refugees but any newcomers with their environment. Our team is working in the Hacking Utopia project at UDK (University of Arts) in Berlin. We are two product designers and two communication students.\nMain target group are refugees why we mostly talked to young men from syria. Of course they are facing a lot of problems and some are probably more serious tha the one we are trying to solve. We found out that -waiting for german bureaucracy to give them the needed papers and learning german- a lot of them feel lost in their new environment. Although our focus is on refugees Newcomer is for everyone, who is new in the city.\nOur App combines different types of challenges in a city-rally taking place in Berlin. They make them explore the town and talk to people. So for exapmple it asks them to take a photo of something, that reminds them of their origin. Also we are inviting Institutions like Bars, Caf\xe9s and Eventspaces be a part of our project. So for example we lead a participant to a caf\xe9 and ask him to drink a coffee with someone. Both drinks are half priced so they get in contact by using this discound. With a growing community different app-users could match and meet to solve tasks together and have a nice experience.\nSo our app definitely is no tourist guide. It is more like a motivation-tool to go out and socialize. In two weeks we are starting a crouwdfunding-campaign on start next. Until then we clarify our concept and test it with people. If you have questions or suggestions please feel free to comment.\nMilan/Newcomer', u'entity_id': 699, u'annotation_id': 10515, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'As far as tools, we have tools for basic phones and smartphones (Android exclusively). We work with implementing partners and/or governments to equip health workers with these tools.', u'entity_id': 564, u'annotation_id': 10514, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'The device can be controlled by means of a smartphone app or by a program with predefined motions/tasks.', u'entity_id': 806, u'annotation_id': 10513, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'For instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media.', u'entity_id': 548, u'annotation_id': 10512, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific "type" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as "album art" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement "xyz"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.', u'entity_id': 13504, u'annotation_id': 10511, u'tag_id': 1565, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 10510, u'tag_id': 1565, u'entity_type': u'post'}, {u'quote': u'Strongly scented soap, rosewater, essential oil (careful with skin contact) on a scarf dipped maybe mixed with vasiline could could produce a pleasent or at least effectively masking smell.\n\nVicks VapoRub supposedly also works as mosquito repellent, as well as medical uses.\n\nIf you have small things that small you could fix them with a safety pin.\n\nEspecially for women I could imagine the opposite could also be helpful in some situations: https://en.wikipedia.org/wiki/Stink_bomb\n\n\n  \n    amazon.com\n  \n  \n    \n\nStink Bombs 12 Boxes', u'entity_id': 13515, u'annotation_id': 13052, u'tag_id': 1566, u'entity_type': u'comment'}, {u'quote': u'Another thing that could make face to face meetings different is that you can smell the person and the environment. Also a LOT of our nervous system is connected to the stomach/digestive tract (the face and brain came way later!) so I would not be surprised if there is more purpose to business/conference dinners than to knock out the prefrontal cortex a little (althought that can also help).', u'entity_id': 30502, u'annotation_id': 10523, u'tag_id': 1566, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 778, u'annotation_id': 10524, u'tag_id': 1566, u'entity_type': u'post'}, {u'quote': u"In terms of what I specifically learned, I realised I never answered you here...  Because I really would like to get more people doing citizen science, and especially help them become aware of how easily we might be able to help our cells avoid too much damage, also for future generations, I guess one personal thing I (re)learned was how difficult it is to push ideas onto people directly.  Even if they seem very nice.  For one example, many times I would have liked to advice people to skip their cigarette break (since cigarette smoke not only can directly damage DNA but prevent its repair!), but I guess there was only one person that I even pointed this out to (very gently, I think)...  I believe people have an idea that there are so many bad things out there, that one more makes no big difference, and of course adults are allowed to make their own choices.  Nonetheless, I hope that if they could really understand 'why' such things are bad for us all, and the environment - based on this idea of 'dynamic genomic integrity' getting disrupted, things could change for the better... (here is the link to my public service association, http://www.genomicintegrity.org/  just in case someone would like more info in this regard.  The summary flyer btw is available already in 10 languages, but I would love to make more t", u'entity_id': 38966, u'annotation_id': 11722, u'tag_id': 1913, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 10527, u'tag_id': 1568, u'entity_type': u'post'}, {u'quote': u'social care', u'entity_id': 6272, u'annotation_id': 12500, u'tag_id': 2617, u'entity_type': u'post'}, {u'quote': u'We are made to become cells in revolt, aberrant genes, failed organs, physicalities riddled with disease', u'entity_id': 521, u'annotation_id': 10530, u'tag_id': 1570, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 12342, u'annotation_id': 10532, u'tag_id': 1571, u'entity_type': u'comment'}, {u'quote': u'hat can we as designers do? designing not only objects, but situations, society\ndesigning society.\nhow can we create a community where everyone respects each other? helps each other?', u'entity_id': 651, u'annotation_id': 10531, u'tag_id': 1571, u'entity_type': u'post'}, {u'quote': u'They run a large physical space consisting of a large carpentry workshop, metal working room, co-working stations for makers, and\xa0timber warehouse.\xa0People whos lives have been battered by storms such as worklessness, depression or addiction work on demanding projects which require collaborative efforts. Some of the products are then sold through the social enterprise - their traditional wood\xa0longboats are widely recognised as the best on the market.', u'entity_id': 6356, u'annotation_id': 10541, u'tag_id': 1572, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 764, u'annotation_id': 10540, u'tag_id': 1572, u'entity_type': u'post'}, {u'quote': u'WHAT?\nA social enterprise beer brewing club.\nWHY?\nSt. James\u2019 Hospital,\xa0Dublin,\xa0commissioned a service design project\xa0in search of\xa0\xa0a non-clinical, community based service design solution to the problem of particularly poor overall personal health locally. The aim is to focus on reducing\xa0the number of inpatients over fifty years of age with entering the hospital with preventable ailments such as heart disease, high cholesterol, dementia, and lung cancer.\xa0\nThe hospital is based\xa0in The Liberties in Dublin, which got its name in the 12th century due to its location just outside Dublin City\'s walls \u2013 lands united with the city, but still keeping their own jurisdiction (hence "liberties"). The area\'s history is still very relevant to the health of its residents.\nBeing outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world\'s largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties\xa0is a city neighbourhood of opportunities and innovation, but its history -\xa0positive and negative -\xa0pervades. Although having undergone much urban regeneration as well as gentrification,\xa0the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing\xa0in the Liberties today.\xa0\nOn researching in the area first-hand, it was observed that there was a distinct lack of male presence in local community centres, as well as a high number of men drinking alone in pubs. The Liberties Local Health project draws on this observation to engage those lone drinkers to become members of a local brewing club, where beer is brewed by locals, for locals.\nThe\xa0project takes its inspiration from the highly successful Men\u2019s Sheds mental health initiative whose\xa0motto is, \u201cmen don\u2019t talk face to face, they talk shoulder to shoulder.\u201d\nHOW?\nThe\xa0brewing club for men over fifty\xa0in the locality \u2013 where they create a low percentage beer brewed by locals,\xa0for locals \u2013\xa0harnesses existing local\xa0skill sets of the hundreds of Guinness factory retirees.\nThe brewing club, "Sl\xe1inte", takes it name from the Irish word for "cheers", also meaning "health". The aim of the club is to\xa0encourage\xa0more responsible drinking through\xa0appreciation of the brewing process\xa0as well as forming a sense of pride and comradery among members. The project was commended by health industry professionals after its presentation at Dublin\u2019s Active Age Conference 2012.\nWith Ireland\'s craft beer market having hit\xa0\u20ac59 million in 2016 (up form \u20ac40 million in 2015) and volumes of beer from Irish microbreweries having increased by 415% between 2011 and 2015, the brewing club "Sl\xe1inte" has high viability potential to run itself as a social enterprise overseen by members, bringing with it a sense of pride, achievement, and overall better health.', u'entity_id': 841, u'annotation_id': 10539, u'tag_id': 1572, u'entity_type': u'post'}, {u'quote': u'Just stumbled upon this\xa0social enterprise creating community and business\xa0opportunities for migrant women chefs - especially through popup kitchens.\nMazi Mas means "with us" in Greek. "In the kitchen we speak the same language" they say.. A beautiful presentation video is here:\xa0http://www.mazimas.co.uk/our-story/', u'entity_id': 12481, u'annotation_id': 10538, u'tag_id': 1572, u'entity_type': u'comment'}, {u'quote': u"Finally, I asked how would he explain his entrepreneurial path to those opposing the market? He said a couple of things I find hilarious and worth considering. First of all, that activism is for city people - while he wanted to go back to his olive groves and do the farm life. Secondly, there is a dire need of changing the way people do business - in a sustainable way, with respect to diversity, with a different concept of what's valuable. It's not the price of land and potential golf courses, not the cheap fast forest. Thirdly, doing things like bread plates is not a rocket science - but if successful it points towards effective and regenerative entrepreneurship. Therefore, an entrepreneur doing such kind of work realizes the visions of an activist - by actually convincing a chain of restaurants to deliver local, better coffee or beer, by cutting off the middlemen. It means millions of people affected in a positive way. It takes a solid ethical concept and guts to take risks, but it pays off in many ways. And it fills the unemployment gap, which wastes the potential of a whole generation now. Interacting with the system is the way for Pavlos. And I really like the fact he's not used to failing.", u'entity_id': 704, u'annotation_id': 10537, u'tag_id': 1572, u'entity_type': u'post'}, {u'quote': u'For all these reasons, ML can be considered a special case in the city of Milan where the revitalization of the neighbourhood markets \xa0(as lot of them have been closed or are not vital at all), has so far been addressed in a more conventional way. In fact, starting from a public tender aimed at reallocating empty spaces and at revamping local markets, some of those markets have been reopened, basically around the idea of hybridization between food trading, restaurants, entertainment, paying particular attention to the quality and fairness of the products (for example \u201czero kilometer\u201d production philosophy). Good examples are \u201cMercato del Suffragio\u201d or \u201cDarsena\u201d.', u'entity_id': 14528, u'annotation_id': 10536, u'tag_id': 1572, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 10535, u'tag_id': 1572, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 10533, u'tag_id': 1572, u'entity_type': u'post'}, {u'quote': u'project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\xa0events branded as such -\xa0"you should spend time with strangers, it\'s healthy and fun".\nIt\'s nice because it starts with a personal burning point and doesn\'t pretent it will find answers. Needing to find\xa0answers can be scary sometimes', u'entity_id': 7822, u'annotation_id': 10543, u'tag_id': 1573, u'entity_type': u'comment'}, {u'quote': u'Also, build informal social events where people just meet. In what we do "sales" basically means really understanding what people you come across need and connect it with something you are doing. Then there\'s the research work to understand how they can put money into hiring you. Once you know this you can make an offer. So maybe it could work to split these tasks across the collective? We\'re getting there as we move into a space.', u'entity_id': 23272, u'annotation_id': 10542, u'tag_id': 1573, u'entity_type': u'comment'}, {u'quote': u'What kind of structures and processes are essential building blocks or make up the \u2019hardware\u2019?', u'entity_id': 6304, u'annotation_id': 10547, u'tag_id': 1574, u'entity_type': u'post'}, {u'quote': u"Social streets: We heard about social streets not long ago via Giulia Ganugi. She's a PhD student Sociology in Bologna. Her research is about the Social Street phenomenon, born in Bologna three years ago and spreaded throughout Italy and the world. She visited us in Ghent to know more about the Living Street-experiment.", u'entity_id': 33778, u'annotation_id': 10546, u'tag_id': 1574, u'entity_type': u'comment'}, {u'quote': u'I\'m curious @Rossana_Torri, in the new "economic innovation" labelled tenders, would Dynamoscopio or other similar, smaller organisations with potentially no track record but great ambition and ideas stand a chance? Are those tenders made for social innovators, with them specifically in mind?', u'entity_id': 18275, u'annotation_id': 13053, u'tag_id': 2421, u'entity_type': u'comment'}, {u'quote': u'And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, "restoring the zombie economy", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?\xa0\nEven though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what\'s happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.', u'entity_id': 704, u'annotation_id': 10554, u'tag_id': 2421, u'entity_type': u'post'}, {u'quote': u'it works as politically loaded displacement of state activities, but it also works as "social innovation"; people helping each other as a\xa0complement\xa0to public sector service', u'entity_id': 15560, u'annotation_id': 10552, u'tag_id': 2421, u'entity_type': u'comment'}, {u'quote': u"1. At LOTE5 we are organising this reflexive design exercise on Collaborative inclusion: how migrants-residents collaboration can produce social values. The event is run by Ezio Manzini, one the world's leading designers for social innovation. You can partner with us\xa0if you want to help make it into a workshop on addressing specific problems tied to reception and inclusion of asylum seekers. Or just sign up and participate.", u'entity_id': 5234, u'annotation_id': 10551, u'tag_id': 2421, u'entity_type': u'post'}, {u'quote': u'how we can translate the intangible social, cultural, creative value to a tangible market one?', u'entity_id': 14720, u'annotation_id': 10550, u'tag_id': 2421, u'entity_type': u'comment'}, {u'quote': u'We realise now that the most valuable technology that is being discarded by our society is PEOPLE. We are seeing talented, skilled people unmobilised, and we think that this is a criminal waste. We also see deeply uninspiring, value-free jobs (like working in call centres) as the only structural answer put forward by mainstream business and industry, and we want people to work with us to develop more inspiring, creative, engaging, and socially valuable jobs as an alternative.', u'entity_id': 1710, u'annotation_id': 10549, u'tag_id': 2421, u'entity_type': u'post'}, {u'quote': u'(social, in your case) innovation is in seeing the world with new eyes as opposed to making a gizmo. You noticed an abundance of old computers in the midst of a failure to ramp up with the digital economy in Sheffield; the whole things grows out of an art project, then of a training program, so you think\xa0way\xa0out of the box with respect to how, say an innovation economist would.', u'entity_id': 6759, u'annotation_id': 10548, u'tag_id': 2421, u'entity_type': u'comment'}, {u'quote': u'Cities are experiencing a growing social crisis: lacking in social cohesion; insufficient public services; decreasing support by traditional social forms (as families and neighbours); growing sense of loneliness. The gap between the growing demand and the shrinking offer of care is the basis of the present care crisis. To overcome this crisis a brand-new care systems has to be imagined and enhanced. It is possible to imagine communities of care and their socio-technical enabling ecosystems, capable to sustain and coordinate people\u2019s caring and collaborating capabilities and doing so, creating new forms of care-related communities.', u'entity_id': 832, u'annotation_id': 10563, u'tag_id': 1577, u'entity_type': u'post'}, {u'quote': u'While it\u2019s true that each of us is unique and may have unique circumstances, none of us is alone in our struggles. \xa0It great reduces isolation and alienation. It increases the sense that \u201cwe\u2019re all in this together,\u201d and kind of normalizes the individual situations. While members, in turn, encourage each other for support, feedback, and connection, instead of getting all that from the clinician.\xa0 By sharing experiences we all learn from each other and navigate out of their current situation and ultimately helps to find your voice in the sense of relating to others.\xa0 On the flipside, it takes strength and some recognition of the needs of others to function well in a group, not be destroyed by it. Creating the community atmosphere to overcome challenges and gain confidence.', u'entity_id': 26061, u'annotation_id': 10562, u'tag_id': 1577, u'entity_type': u'comment'}, {u'quote': u'single energies are often burn out or depressed by being alone or istitutionalised or politiced....here i see a cognitive breakthru...', u'entity_id': 16165, u'annotation_id': 10561, u'tag_id': 1577, u'entity_type': u'comment'}, {u'quote': u'I want to see the whole of society as one body, but here everybody lives in his box, I call this\xa0"boxpeople". You live together but you don\u2019t really live together. You are online, but not connected, we have to discuss, to see each other more. This is my new society, so i want to care as much about this now then how I cared about my society in Syria.', u'entity_id': 790, u'annotation_id': 10560, u'tag_id': 1577, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 656, u'annotation_id': 10577, u'tag_id': 1582, u'entity_type': u'post'}, {u'quote': u"Socialization is the elephant in the room and teenagers are in no mans land\nWell, this is for sure. I guess our school system was designed\xa0in a context where socialization happened outside the school and peer structures were robust. And maybe they are not that robust anymore, and anyway teenagers have very little time. This, by the way, is danah boyd's take on teens and social media in It's complicated: families saturate teenagers time with what she calls adult-approved activities, and they escape into social media to Just Hang Out.", u'entity_id': 22646, u'annotation_id': 10576, u'tag_id': 1582, u'entity_type': u'comment'}, {u'quote': u"parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there's one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important,\xa0from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.", u'entity_id': 22212, u'annotation_id': 10575, u'tag_id': 1582, u'entity_type': u'comment'}, {u'quote': u'A friend of mine, expat living in Cluj, has\xa0similar questions to yours and he\'s starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\xa0events branded as such -\xa0"you should spend time with strangers, it\'s healthy and fun".\nIt\'s nice because it starts with a personal burning point and doesn\'t pretent it will find answers. Needing to find\xa0answers can be scary sometimes', u'entity_id': 7822, u'annotation_id': 10579, u'tag_id': 1583, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 684, u'annotation_id': 10578, u'tag_id': 1583, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14787, u'annotation_id': 10571, u'tag_id': 1578, u'entity_type': u'comment'}, {u'quote': u'I\'m Jean-Paul Dossou, from Benin in West-Africa.\xa0\nSome wise people do perceive already the unsustainability of the current health care provision organization in western developped countries, but this is the dreamed model, that developping countries are running to. Is it possible to "jump a generation" in the organization of health care provision in developping countries? This is the underlying question of the "modern" collaborative care expriences we are going to share in this post about Coeur d\'Or.\nAs a short backgrund, Cardiovascular diseases (CVD) induce yearly about 17 millions of deaths. Over 75% of those deaths occur in LMICs where risk factors are highly prevalent and the health system is poorly adapted to deal with chronicle and highly expensive emergent conditions. In Benin, the prevalence of high blood pressure is about 30%. Health promotion on this poorly funded issue, in this limited resource setting, requires innovative communication tools. To this end, C\u0153ur d\u2019Or (www.facebook.com/groups/coeurdor/ ) was created in 2011, to test the feasibility of using social media for providing promotional and preventive care against CVD in Benin, in a collaborative way.\nWe aim\xa0here to present briefly\xa0C\u0153ur d\u2019Or , and some lessons learned so far. We use a case study approach based on participatory observation, (in) formal in-depth interviews with different stakeholders and documents reviews on the solution. \xa0Social media analytics tools are used for the quantitative analysis of the profiles of the solution users and activity.\nC\u0153ur d\u2019Or is an open Facebook group of 21615 members, mainly from Benin (West Africa). It runs as a tool of keeping in touch with a huge number of the community members, allowing for a double-sense communication, spreading cutting-edge information on CVDs and building a community-based leadership on CVD. The targets are young, mainly from urban and semi-urban areas, educated and active on social media. They connect to the platform using mainly smartphones.\xa0 A wide range of subjects related to CVDs and Non-Communicable Diseases are discussed from several perspectives. Members can initiate a discussion stream, receive inputs from several profiles of members and get a summary from a medical expert based on key evidence-based prevention measures against CVD.\nThe group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.\xa0 Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 \u20ac to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers.\nThe rapid development of telecommunications improves the access of a growing number of people to Internet and social media. A critical mass of the group improves its political influence and creates a web tool that can help for a viral diffusion.\nC\u0153ur d\u2019Or demonstrates the feasibility of using social media as an innovative approach for offering promotional and preventive care on health issues in sub-Saharan Africa. It opens new windows for thinking and dreaming again for an effective community participation in all its dimensions in the global south.\nThank you very much for your comments and questions.', u'entity_id': 672, u'annotation_id': 10570, u'tag_id': 1578, u'entity_type': u'post'}, {u'quote': u"Thanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the\xa0digital\xa0platform of social media (they pay less attention to the\xa0public\xa0nature of some of these platforms).\nMemorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.", u'entity_id': 11904, u'annotation_id': 10569, u'tag_id': 1578, u'entity_type': u'comment'}, {u'quote': u'In my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in\xa0Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other\xa0rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief\xa0strikes, the individual is embedded in a nurturing local community that can help them heal.\nMy two cents..', u'entity_id': 8509, u'annotation_id': 10568, u'tag_id': 1578, u'entity_type': u'comment'}, {u'quote': u'Using Social Media more conscienscously....mmm I don\'t know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based "fast" media. I ask myself what effect this has on the dynamics of grief, which are slow and\xa0somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature.', u'entity_id': 8509, u'annotation_id': 10567, u'tag_id': 1578, u'entity_type': u'comment'}, {u'quote': u'Four years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn\'t go to the funeral: it still feels surreal, like she might show up at any time, and the "active" facebook account isn\'t helping.', u'entity_id': 8509, u'annotation_id': 10566, u'tag_id': 1578, u'entity_type': u'comment'}, {u'quote': u'Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites?\n\nDeath has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person\u2019s final days, parting words and gratitude from the deathbed, captures of assisted suicide and \u201cright to die parties\u201d, and families commemorating the deceased.\nThese experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways \u2013 new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated.\nResearch has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to \u201cDeath Studies\u201d.\nFor instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media.\nAs an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces.\nBut\xa0just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group\u2019s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as \u201ccollective effervescence\u201d. This is \u2018aftercare\u2019, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of \u2018mutual aftercare\u2019. Young people seem to be doing similar things in digital spaces, and I wanted to find out how.\n*\nBeing a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of \u201cholding space\u201d for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began \u201cdeep-liking\u201d my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal \u2013 knowing how to approach someone in grief on social media or how to express grief on social media is not actually \u201ccommon sense\u201d. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.\nI was both a young person managing grief in digital spaces and an ethnographer invested in understanding everyday practices through intimate anthropological inquiry. To do this, I conducted personal interviews with young people who self-reported using digital media (i.e. the internet, social media, devices and artifacts, non-analogue spaces) to manage their grief. I started with friends in my sister\u2019s social groups, made open calls to undergraduates in local universities, and amassed informants via snowball sampling.\nI wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched.\nI learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.\n*\nThe need to understand young people\u2019s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or \u201ccare for the living\u201d. In other words, despite social workers and counsellors preaching the value of \u201ccare chains\u201d, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.\nAnother doctor reported seeing an increasing number of young patients in their late teens or early-to-mid twenties. Sorrowfully recounting a memorable incident in which her young patient instructed her to post a specifically-worded status update on his Facebook after death, she came to realize that young people deeply valued their digital estates as platforms to communicate gratitude and farewells even on their deathbed. In a handful of other instances, young patients requested for their doctors and counsellors to add them on Facebook or to read their blog in order to access sentiment they felt incapable of articulating in person, in physical spaces, via traditional media\nDespite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they \u201cplay by ear\u201d. Most staff do \u201cwhat feels right\u201d based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come.\n*\nHave you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you?\nWhenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways?\nHow can we use social media more conscientiously so as to create spaces for mutual aftercare?\xa0What can we do for each other in digital spaces whenever a global grieving event occurs?\nWe would love to hear from you.\n*\nThis article was written by Dr Crystal Abidin for OpenCare Research, Edgeryders. Crystal can be contacted at wishcrys.com. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.', u'entity_id': 548, u'annotation_id': 10565, u'tag_id': 1578, u'entity_type': u'post'}, {u'quote': u'Death has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person\u2019s final days, parting words and gratitude from the deathbed, captures of assisted suicide and \u201cright to die parties\u201d, and families commemorating the deceased.', u'entity_id': 548, u'annotation_id': 10564, u'tag_id': 1578, u'entity_type': u'post'}, {u'quote': u'The group stands also as a social mobilization and community participation tools influencing the agenda setting at the national level. It is currently a member of the Multisectorial National Committee against NCDs in Benin, as a leading actor supporting the organization of national campaigns against CVD in Benin each year since 2011.\xa0 Using its online critical mass and its growing network in traditional media and several public and private institutions, the group is capable of mobilizing each year since 2013 material and financial resources up to 25,000 \u20ac to organize offline activities such as a walk (about 5000 participants each year), risk factors screening, interactive conferences during the world heart day. All those activities help at reaching people that are not active online and are done with the leadership of members that are not health workers.', u'entity_id': 672, u'annotation_id': 10572, u'tag_id': 1579, u'entity_type': u'post'}, {u'quote': u'social network', u'entity_id': 34574, u'annotation_id': 12107, u'tag_id': 2308, u'entity_type': u'post'}, {u'quote': u'The digital economy produces enormous amounts of wealth that become profit (often non-taxed) for few billionaires. This money could be used to power the welfare state, nonprofit projects or a collaborative economy.', u'entity_id': 6300, u'annotation_id': 10573, u'tag_id': 1580, u'entity_type': u'post'}, {u'quote': u"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization\xa0in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security. \xa0The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project. \xa0Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practices.", u'entity_id': 14771, u'annotation_id': 10574, u'tag_id': 1581, u'entity_type': u'comment'}, {u'quote': u"For the past two years, we've been using sociocracy in our community organisation.\xa0Its\xa0brought flow and connection to all the different activites that take place in pursuit of our purpose and to sustain us as an organisation which can otherwise quickly feel like the left hand doesn't know what the right hand's doing.\xa0Its brought clarity to our decision making, and how our work is organised. I particularly value the use of consent rather than consensus which uses the criteria; 'is it good enough for now, safe enough to try' as the basic test in approving decisions.\xa0Perhaps you've come across it?", u'entity_id': 23537, u'annotation_id': 10581, u'tag_id': 1585, u'entity_type': u'comment'}, {u'quote': u'Engineering meets biomatter. The squiggly squishy, compliant bits of biomechanics allow you to produce one size fits all. If someone has physical disability, like cerebral paulsy, giving them a little bit of improved mobility can have huge positive effects.\n\nFunctionally grated structures:\xa0Inspired by Bird beaks: Hydrophobic proteins and high water content parts of the body.\xa0\n\nExample where functional grating is applied: Cerebral palsy\n\n\nCost of therapy is very expensive because one on one time with specialists are very costly, and tech used is not modifiable.\nso they build soft exoskeletons for actuators (for joints) using functional grating principles. Check out their "Neucuff"\n\n\nAnother example where functional grating is used: Prosthetics\n\nUses distributed force: see goats\' feet as a reference/description of the principle used to build prosthetics.\n\n\nFeets that are hard metal pads (hard actuators) does not allow you to compensate for unexpected events.\nAlso flies\' spatulated hairs on their feet. N++1. Aron Parnell tries to mass manufacture.\n\n\nLast example: Replacing atmospheric preassure in space suits with pneumatic preassure, shrinking them to fit human body. Problem: Spring effect. Solution: Don\'t make mechanical counterpressure suit in one go, but gradually? (not sure I got this right)', u'entity_id': 5136, u'annotation_id': 13054, u'tag_id': 1586, u'entity_type': u'post'}, {u'quote': u'Be it inflated or just rubbery soft (silicone is a great material to play with at home!).\nOne particularly interesting aspect is that it uses a different engineering paradigm I dare say. Usually things are treated as broken if they deform (past an elongation of 0.2% typically). If you look at the majority of what matters on this planet - deformations (sometimes quite large) are the norm!\nThe reasons there is such a difference in approaches is to a large degree historical and does NOT make much sense for very many applications. In fact prothesis are a nice example of the old paradigm hit the wall pretty bad:\nIf you replace a bone (which is pretty soft compared to what we usually design for in the engineering world!) with a much "stiffer" (technical term) artificial limb and you now jump with such a replaced bone things don\'t end well. While the artificial limb can (and does) take higher stresses - their neighboring bones typically do not - and eventually are wrecked.\nFly feet, cockroach feet, gecko feet are also utterly fascinating subjects if you delve into them!', u'entity_id': 6954, u'annotation_id': 10582, u'tag_id': 1586, u'entity_type': u'comment'}, {u'quote': u'I am quite passionate about the idea of electronic democracy (well, actually I know more about electronically facilitated\xa0government,\xa0or even governance). I personally ran some government projects that used social software, and even wrote a book about this stuff. In fact, Edgeryders itself was born as one of those projects!', u'entity_id': 14196, u'annotation_id': 10588, u'tag_id': 1588, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 10763, u'annotation_id': 10587, u'tag_id': 1588, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 10586, u'tag_id': 1588, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 558, u'annotation_id': 10585, u'tag_id': 1588, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 10584, u'tag_id': 1588, u'entity_type': u'post'}, {u'quote': u'Clearly you\'ll have amassed vital\xa0practical experience on your travels and it would be good to link up the learning with others in Edgeryders. I really like the notion of \'Emergency Mutual Aid\' and a very concrete practice of solidarity. I can see how it\'s useful to see "the migrant crisis as a training ground for the crisis of the future".', u'entity_id': 14386, u'annotation_id': 10598, u'tag_id': 1590, u'entity_type': u'comment'}, {u'quote': u'Gehan is the co-founder of\xa0the GalGael Trust,\xa0an organisation of social solidarity based in Glasgow, Scotland. Taking its roots\xa0from\xa0a communal protest camp against a planned\xa0motorway in the local area, the trust developed into a community building effort involving craft-making, rural event organising, boat building and timber work.', u'entity_id': 6357, u'annotation_id': 10597, u'tag_id': 1590, u'entity_type': u'post'}, {u'quote': u"Hey @johncoate and @Gentlewest, I just saw these last messages of yours and I am\xa0sorry I haven't replied earlier. @johncoate Solidarity can arise in many ways and forms, and both formal associations and informal collectives have offered amazing solidarity solutions in many ways. For me what matters is not formality or non-formality,\xa0but \xa0the level of participation and the style of governance.\xa0In our case, the R2R call center is an informal collective, supported by the open global cooperative ecosystem of FairCoop on the global level, which is also a self-organised project with a global community involved. @Gentlewest thank you for the nice words, I couldn't agree more.", u'entity_id': 29081, u'annotation_id': 10596, u'tag_id': 1590, u'entity_type': u'comment'}, {u'quote': u'Power Makes us Sick (PMS) is a creative research project focusing on autonomous health care practices and networks from a feminist perspective. PMS seeks to understand the ways that our mental, physical, and social health is impacted by imbalances in and abuses of power. We can see that mobility, forced or otherwise, is an increasingly common aspect of life in the anthropocene. PMS is motivated to develop free tools of solidarity, resistance, and sabotage that respond to these conditions and are informed by a deep concern for planetary well-being. \xa0PMS is working together to forge an accountability model of health that can function multilocally and without requiring place-based fixity or institutional support.', u'entity_id': 826, u'annotation_id': 10595, u'tag_id': 1590, u'entity_type': u'post'}, {u'quote': u'Communities can be built on imagining the past, children help us to imagine the future together and learn to build solidarity - we love our place and its history, but anybody from\xa0Senegal or from\xa0Germany who also loves them is welcome;', u'entity_id': 21382, u'annotation_id': 10594, u'tag_id': 1590, u'entity_type': u'comment'}, {u'quote': u'Social solidarity is in its worst conditions in this war but still can feed the hungry and keeps warm to those who are cold. For example the project of "grace conversation"\xa0in Damascus which provides medicine for thousands of families from excess medication at other families, and also "maoayed alrahman"\xa0which are food tables spent by the Syrians with very high annual cost ( 50 million dollars) in 2014 through all the cities.\xa0In addition to internal displacement thousands of families are participating with their\xa0homes and food and many other live examples.', u'entity_id': 797, u'annotation_id': 10593, u'tag_id': 1590, u'entity_type': u'post'}, {u'quote': u'So I suspect the best advice is to hang in there, and keep building.\nAlso, the world is watching now, more than ever. Solidarity has ever new ways of showing its face', u'entity_id': 15843, u'annotation_id': 10592, u'tag_id': 1590, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 748, u'annotation_id': 10591, u'tag_id': 1590, u'entity_type': u'post'}, {u'quote': u'I wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched.', u'entity_id': 548, u'annotation_id': 10590, u'tag_id': 1590, u'entity_type': u'post'}, {u'quote': u'Hopefully, we will see more innovative ways of care develop, especially with the idea of co-living / caring, that can benefit both parties, not just be an act of charity or goodwill / volunteering...', u'entity_id': 27817, u'annotation_id': 10600, u'tag_id': 1591, u'entity_type': u'comment'}, {u'quote': u'Hello @Henrike and @DavidFromAntwerp , I could not help noticing that your\xa0approach is closed to that of our friend Giulio Quaggiotto, except he applies it to social and economic development of regions:\xa0http://www.nesta.org.uk/blog/fall-love-solution-not-problem . What he does is not ask people "what do you need?", but "what are you already doing to solve this problem?", or even "what are you already doing that is good for your local community?".\xa0\nWith a little help from Google Translate I looked into Flipped Job Market. It is really refreshing. What are your results so far, Henrike?', u'entity_id': 21821, u'annotation_id': 10602, u'tag_id': 1592, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 754, u'annotation_id': 10601, u'tag_id': 1592, u'entity_type': u'post'}, {u'quote': u'Thx @steelweaver for your comment. As for the somatic apporach, I totally agree. I often use somatic experiencing, especially for chock trauma. Before going to Calais, I need to look up soms good group exercices for the volunteers. Suggestions welcome.', u'entity_id': 13769, u'annotation_id': 10613, u'tag_id': 1602, u'entity_type': u'comment'}, {u'quote': u'- Somatherapy was developed during the military junta in Brasil as a combination of psychotherapy, capoeira and anarchist theory. It favours use of enjoyable, play-based physical activities and emphasises placing individual mental health within the larger political context.', u'entity_id': 13679, u'annotation_id': 10612, u'tag_id': 1602, u'entity_type': u'comment'}, {u'quote': u"@Alex_Levene and @Aravella_Salonikidou (and whoever is interested), let's all make a note to go deeper into the notion of suboptimality. I think it could be important. Normal policy is that\xa0fast, messy, large scale response has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans. If we can make a case for this to be the wrong thing to do in some case, it is goping to be an important policy contribution.", u'entity_id': 19220, u'annotation_id': 13055, u'tag_id': 2209, u'entity_type': u'comment'}, {u'quote': u'What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.', u'entity_id': 19161, u'annotation_id': 10615, u'tag_id': 2209, u'entity_type': u'comment'}, {u'quote': u'"So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help"\nthis is definitely the case at the Calais camp', u'entity_id': 19203, u'annotation_id': 10614, u'tag_id': 2209, u'entity_type': u'comment'}, {u'quote': u"I also have a personal project close to my heart - in which Belgium Design Council works on also. It's about special needs children. As there is a personal background to it - one of my sons is nearly 11 yrs old and\xa0is autistic, with emotional and behavior regulation challenges. As we have been dealing with this since he was 2 yrs old, I have observed there is a big gap between what's available on the grassroots level for parents and at an institutional level. There is no support in the communities for parents with children with special needs for example. This personal project is about injecting more tools and awareness with creating more inclusive care in the communities themselves - also by using design thinking and visual tools, beyond pictograms available online. I have realized how much sensory input and additional energy my son needs and how much its presence could help him move around and understand things better - and visual designers and illustrators could greatly help such children. As Belgium Design Council we are planning now to fill this gap - one way is to work with the schools where children with special attend. \xa0Our son will be changing to a further\xa0specialised school closer to our\xa0home now. I have spoken\xa0with the principal\xa0and he is very interested some of the creative\xa0inclusive projects I have suggested,\xa0but the school has\xa0no time to initiate these - I have the experience and the knowledge and wish gather some support from other parents and see if we can move forward. Same for the people in the municipality, who are very much interested in this kind of work.", u'entity_id': 716, u'annotation_id': 10617, u'tag_id': 1605, u'entity_type': u'post'}, {u'quote': u'The history is long and I\u2019 don\u2019t want to become boring, but only to say that it\u2019s not possible to speak about refugees in general when trying to be of real help. We have to think about the countries where we are and where they come from (for example 90% of Syrian refugees that arrived in Italy decided not to ask asylum here, but in other north EU countries), the migration routes, the particular war conditions, but also the economical ones..', u'entity_id': 515, u'annotation_id': 10618, u'tag_id': 1606, u'entity_type': u'post'}, {u'quote': u'On 3: agreed to an extent. There is a lot of wickedness in the biotech industry. Research is very slow and expensive, almost as extreme as it gets. The dynamics do change at these extremes, I think, and that asks for a different strategy. To break through, accumulating small wins in an iterative way might not be ideal.\xa0Reaching a particular benchmark that actually matters big time (eg. the first open source production protocol for insulin) perhaps would be.', u'entity_id': 12977, u'annotation_id': 10619, u'tag_id': 1607, u'entity_type': u'comment'}, {u'quote': u'Spina Bifida', u'entity_id': 34541, u'annotation_id': 12286, u'tag_id': 2497, u'entity_type': u'post'}, {u'quote': u'spinal cord injury (SCI) c', u'entity_id': 720, u'annotation_id': 10620, u'tag_id': 1608, u'entity_type': u'post'}, {u'quote': u'This area of the UK has a lot of rural poverty. The town in question used to be a centre of the textiles industry and still has associated businesses, but now is mostly well-known for being poor, backward and depressed in comparison to nearby Exeter or Taunton. A walk down the high street reals the unholy trifecta of economic malaise, high levels of obesity, ill-health and disability, and that indefinable loss of spirit in a town that convinces every young person of passion or ambition to leave the area at the earliest opportunity.', u'entity_id': 671, u'annotation_id': 10621, u'tag_id': 1609, u'entity_type': u'post'}, {u'quote': u'These are two vital questions for me and why I\'m\xa0"Creating new realities". There\'s this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts\' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that\'s feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.\xa0\nTo me there\'s roughly two aspects to creation, finding love and expressing it. In whatever way feels most relevant. So creating new realities is about this expression. Expressions of love, expressions of fascination, of being intrigued by a question. This passion, like life can often only be looked upon afterwards. Yet is highly stimulating during the process. At the same time, we can experience a deep peace from within. Growing and integrating. Expressing and being silent. Creating new realities requires both in my experience. Going into something, almost blindly. Being into the question, into life, almost unconsciously. Letting go of what I already know. And at the same time being fully aware of what\'s happening, even when I don\'t know where I\'m going. I\'m fully aware of what I\'m experiencing, all of the feelings and sensations, getting to know myself. To me, creating is about holding space and love, it\'s also about exploring new states of being. More expansive versions of myself. Going into the unknown. Creating new realities, riding the edges, exploring new perspectives, and at the same time, taking care of each other, holding space, accepting all of yourself and everyone around you. Knowing the lows to accept the others and overcoming doubt, finding highs to thrive and create a more amazing life.\xa0\nSo can we\xa0do that?\nCreate new realities and find deeper love within and for each other? Can we create and hold space? Can we set up a world that\'s a reflection of the love and creative potential? Can we shine light on some of the systems that enslave us (like the way money is used to control us) and create new systems that support the dynamics of our potential? Can we let go of heavy concepts and perceptions such as ownership? Can we create a world that\'s natural and harmonious, yet inspiring and unknown? Can we co-create out of passion rather than looking for security? Can we step into the unknown and create with love? So how do we deepen the understanding of ourselves and our behaviours? And more importantly, how can we let go of everything that doesn\'t serve us. Can we accelerate into loving ourselves? Which techniques can we use? Which perspectives can we take? And physically how can we create lifes that actually feel inspiring and authentic?\n\nOver the last years I\'ve been organizing several series of meetings about personal transformation and\xa0living from the heart\xa0(for instance;\xa0Vrij met Geld/ Free with Money). Also I\'ve worked and lived with changemakers communities, for instance at the Synergyhub in Rotterdam and several ecovillages/ ecocenter\'s, as well as intensely researched the topic of enlightenment and spiritual growth and the physical world. Over the last months I\'ve started writing a book: Step into creation - guidebook for a co-creative universe. Recently I\'ve started a platform "Creating new realities". One of the important lessons I learned is: "you can\'t co-create if you don\'t resonate" and "a little shift in perspective" is often all you need to get back into flow. When I stop resisting, things happen. "When I let go, I know". Behind the known is a infinite field of potential. There lies true excitement. There is infinite inspiration at our disposal. And at the same time, it\'s nice to play with the physical. So to make the world a reflection of our spiritual growth. To let both go hand in hand. To grow and deepen the quality of relationships and communities. To develop the society and create things that represent our love for the world and the mystery of creation. These are some of my most important reflections over my experiences. That\'s what I\'d love to inspire and catalyze! To create realities that are infinitely inspiring and joyful.\xa0\n\nLooking forward to co-create with you!\n\nEwoud', u'entity_id': 846, u'annotation_id': 10622, u'tag_id': 1610, u'entity_type': u'post'}, {u'quote': u"Changing attitudes and culture takes more. As you've said organising and getting the conversation going at a community level is key, and getting famous/successful people to champion the cause would be a big help. And professional counselling service for individuals effected by these issues would help straight away, and also would be usefull along the journey as yet unknown challeges will surely appear.", u'entity_id': 20403, u'annotation_id': 10623, u'tag_id': 1611, u'entity_type': u'comment'}, {u'quote': u'My Husband and I are also heavily involved in another nonprofit organization in Brussels and volunteer at a local football club, with over 300 youth from various backgrounds. We also have a goal of making this youth more inclusive and open - both for children with special needs, but also for refugees, who get refused from other football clubs around the city for example. We will introduce the first refugee children into the club for the coming season, which we are very proud of, as we see this as part of the wider community work we are involved in.', u'entity_id': 716, u'annotation_id': 10624, u'tag_id': 1612, u'entity_type': u'post'}, {u'quote': u'How to spread your message, how to reach people, how to get your creation out there?', u'entity_id': 6439, u'annotation_id': 10627, u'tag_id': 1614, u'entity_type': u'post'}, {u'quote': u"This is awful news given all the psoitive information you were sharing with us at LOTE5. I'm upset (but not surprised) that this issue is receiving absolutely no attention in UK.\nI will do what i can to share stories\nAlex", u'entity_id': 33769, u'annotation_id': 10626, u'tag_id': 1614, u'entity_type': u'comment'}, {u'quote': u'We need all the attention and help we can get to spread\xa0the message out to the world\xa0to "illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet." Maria Titizyan', u'entity_id': 33738, u'annotation_id': 10625, u'tag_id': 1614, u'entity_type': u'post'}, {u'quote': u'Spoken like a true hacker! Welcome, @thomasmboa, and thanks. This is one hell of a post. I am  intrigued that you view WHO-defined standards as "the capitalistic system": I think WHO would disagree, mostly in good faith, but I also think you are mostly right. Standards are classic (anti) competitive weapon \u2013 I wrote a paper about it myself, in a very different context, almost 20 years ago.', u'entity_id': 37488, u'annotation_id': 11806, u'tag_id': 1615, u'entity_type': u'comment'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11779, u'tag_id': 1615, u'entity_type': u'post'}, {u'quote': u"Good story\xa0@Woodbinehealth. I was searching for the part where starting up is described. How did you gather the people needed to startup? How do you recruit 'clients'?", u'entity_id': 29070, u'annotation_id': 10632, u'tag_id': 2522, u'entity_type': u'comment'}, {u'quote': u'I suspect that we should understand these two projects as running in parallel, rather than collaboratively. MakEY (the project we\'re a partner in) is 100% focused on early years kids, devising workshops to help teachers gain confidence and skills to lead higher value making sessions for 5-8 year-olds, hopefully enthusing them with STEM. We\'re looking to have fun with robots, drawing, moulding things, playing with conductive materials and electricity; then we aim to develop best practices which we can disseminate to other school environments. A further objective may be to understand what kind of "makerspace" could be accommodated inside a school. As you\'ll no doubt be aware, there\'s an EU-wide problem with retaining young people in STEM learning, and this will put us in a poor position to compete globally, and make best use of the new transformations in manufacture.', u'entity_id': 19837, u'annotation_id': 10636, u'tag_id': 1618, u'entity_type': u'comment'}, {u'quote': u'In 2014, I had a solo museum exhibition at the Burchfield Penney Art Center. That project outlined the history and present conditions of the Scajaquada River. The river was buried under the city of Buffalo in the 1800\u2019s as a way to keep from dealing with the smell and pollution found in the water. Parts of the river remain buried and it continues to be polluted even as it is monitored by state and federal organizations.\xa0 My research and installation took about three years to put together, and it presented the complexity of how economy, government policies, lack of planning, lack of accessible information and climate change can dramatically erode an environmental and cultural asset.', u'entity_id': 752, u'annotation_id': 10644, u'tag_id': 1621, u'entity_type': u'post'}, {u'quote': u'It\'s amazing how much ecosystems can be restored with just a few water management techniques: erosion control, soil buildup, aquifer replenishment. I was a fan of high-tech solutions like desalination just a few years ago, but became more and more convinced we better collaborate with nature where possible. A friend recommended me this documentary about ecosystem restoration on a massive scale (30,000 km\xb2 in China).\nIt\'s not that humanity is out of solutions. The problem is, as always, about spreading knowledge and organizing collective action on a massive scale. That\'s why I like that @Michel focuses on the education part. Yet nobody has cracked the collective action problem yet (and not just because we\'re up against strong capitalist "collective destruction") \u2026', u'entity_id': 26958, u'annotation_id': 10643, u'tag_id': 1621, u'entity_type': u'comment'}, {u'quote': u"It's amazing how much ecosystems can be restored with just a few water management techniques: erosion control, soil buildup, aquifer replenishment. I was a fan of high-tech solutions like desalination just a few years ago, but became more and more convinced we better collaborate with nature where possible. A friend recommended me this documentary about ecosystem restoration on a massive scale (30,000 km\xb2 in China).", u'entity_id': 26958, u'annotation_id': 10642, u'tag_id': 1621, u'entity_type': u'comment'}, {u'quote': u"So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles,\xa0even skill up in a process that difficult.\xa0\n\nThere are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder,\xa0said something similar about \xa0how conversation in which neither party is an expert can be lifechanging.\n\nI'm curious about\xa0the\xa0group which seems more or less open - can anyone who reports\xa0feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?\n              \n  \n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 10263, u'annotation_id': 13056, u'tag_id': 2210, u'entity_type': u'comment'}, {u'quote': u'Ignorance and wrong beliefs surrounding disability, compounded with a negative and derogatory attitude of the community (including family members) have contributed to the marginal development in the disability sector in Bangladesh.', u'entity_id': 840, u'annotation_id': 10653, u'tag_id': 2210, u'entity_type': u'post'}, {u'quote': u'@Noemi @Sharon\xa0Interesting topic- thank you @Sharon for sharing. my background is in clinical psychology and International Business so this is coming from a different perspective. There are substantial benefits to group therapy, in addition to human and contact and the openness of being completely vulnerable. Too often, there is a stigma attached and people don\u2019t want to share their experience and rather keep in within. \xa0Group therapy helps realize you\u2019re not alone. Many patients enter therapy with the disquieting thought that they are unique in their situation, that they alone have certain frightening or unacceptable problems and thoughts.', u'entity_id': 26061, u'annotation_id': 10652, u'tag_id': 2210, u'entity_type': u'comment'}, {u'quote': u"I think the wording is a good point. Mental health\xa0to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available\xa0out there,\xa0how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further.\nI'm looking forward to the online discussion on Monday, thank you for setting it up!", u'entity_id': 12885, u'annotation_id': 10651, u'tag_id': 2210, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 810, u'annotation_id': 10650, u'tag_id': 2210, u'entity_type': u'post'}, {u'quote': u"We will exhibit various sadness simulators, wearable objects for the crowd to try which simulate the effects of being depressed, stressed or anxious. These objects have been inspired by an online survey we have conducted in order to find out how people physically feel when they are in emotional distress. Out of dozens of responses we have extracted the most common themes: weight on the shoulders, head pulling down, brain fog and a general discomfort in one's body feeling: hot, sticky and itchy. With these results we have designed various objects: A neck bender, a very heavy device to carry on his back being forced to lean forward. A helmet made of tinted transparent acrylic that simulates looking through a veil and muffles the sound of the surroundings and a really uncomfortable ill-fitting coat made of a super itchy and stiff fabric. We have more ideas but for now we have realized these three.", u'entity_id': 511, u'annotation_id': 10654, u'tag_id': 1623, u'entity_type': u'post'}, {u'quote': u'Inventory skills; also look for ways to encode them into data, and see if that engenders behavioral change, addressing perhaps public health concerns.\n\n\nFrank:', u'entity_id': 38811, u'annotation_id': 11756, u'tag_id': 1917, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 663, u'annotation_id': 13062, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'A place where we can share stories about care', u'entity_id': 541, u'annotation_id': 13061, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'@Rossana_Torri this is a golden opportunity to collect stories of open care for the policy challenge. It will require some kind of structure, though, like proper note-taking, editing notes into first-person stories, then having the civil servants upload them. This is what I did with Mercato Lorenteggio, and it worked.', u'entity_id': 15414, u'annotation_id': 13060, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'Showcase the offer and manage expectations. But how?\n\n\u2192 Communication around culture\u2192 Storytelling could also be the basis on which you build the context for care.\xa0\n\n\nFrame it as a tool for empowerment.\xa0\n\n\n\n\nShared intentions and part of context.\n\nWhat stories?\n\n\nDoes the narrative approach scale as well as we think it does?\n\n\u2192 Can you actually bring it global? Yes if you recognize the identity and scaling issue?\xa0\n\n\nAvailability heuristic\n\n\n\n\nNarrative pattern \u2013 \u2018imagine a world where\u2026. Oh yeah by the way it already exists\u2026\u2019\n\n\n\n\n\nCarriers of narratives \u2013 Fiction of narratives, fables, archetypes or a story pattern (David and goliath, or the fool, the hero who goes on a quest). Look at propaganda in the LRA.\n\n\n\u2192 Are there universal stories?\u2192 But is it personalized better?\u2192 Note on George Lucas mythologist\xa0\n\n\nDavid Hume\n\n\xa0Conclusion:Space for care includes a variety of aspects that one should balance nut still take action.\n\n\nIntention\n\n\n\n\nExpectations\n\n\n\n\nContext-setting\n\n\n\n\nStorytelling as a tool not a universal answer\n\n\n\n\nParties\n\n\xa0Passive, Active, ProactiveGive - Receive | Request - response = Communication space around care (actively caring)They are a lot of difficulties in communicating around care.Stories \u2013 legends - can be a tool to not directly address the issue but rely and build on universal stories.\xa0\xa0What then would be 5 steps to design your context of care?\u2192 Current future vs ideal future', u'entity_id': 5405, u'annotation_id': 13059, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'Create a context for storytelling.\xa0\n\n\u2192 Get to know each other + basic needs?\u2192 Expectations\u2192 Communication and identity/sculpture', u'entity_id': 5405, u'annotation_id': 13058, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'It is a beautiful way of reaching out to the world and letting people know how , living in a confined environment(camps) can be challenging.If we are \xa0our brothers and sisters keepers, then we will make out time from our very busy schedule to donate and help millions in those camps. He cared enough to share this story, so please y\'all, return the favor by giving whch will go a long way of changing a life. " sharing is caring", Giving is transforming and investing in other peoples lives.The best investment, is in the life of another human being. Thanks for sharing', u'entity_id': 27821, u'annotation_id': 10691, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 10690, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'3) A story that binds us together - understanding how our different activities are related', u'entity_id': 788, u'annotation_id': 10689, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'No one has a monopoly on truth, it is somewhere in the middle, I don\u2019t have it, but I have part of it, we complete each other, you and me are pieces of the puzzle. Let\u2019s talk with each others, accept each other.', u'entity_id': 797, u'annotation_id': 10688, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases. \xa0 Beyond the key "theoretical" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.\xa0\nThe online facebook group, is not a tool for curative or palliative care such as online consultations with drug prescriptions. Medical doctors are involved in the discussions and if required, they can give offline, specific orientations to go for curative consultations; but discussions in the group, do not involve curative or palliative care.\n2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be\xa0a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation \xa0on some specific subject with high interest and\xa0later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you want.\n3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan\xa0Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d\'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve\xa0all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.\xa0\n4- Offline events. We realized early in our learning process in the group, that online presence alone is not going to help us reaching our goals. We organize collaboratively offline events: physical activities (walks), risk factors screening, interactive conferences and\xa0workshops. All those events are organized by members of the group. We use the online tools to recruit members who want to collaborate in the organization. We share with them some key principles and support. We use the online tools as well for advertisement of the events. The access to all the physical\xa0event is free of charge. We use a collaborative process to raise the funding, using members of the group that has skills and key positions in potential funding structures. By doing so, we were capable of raising up to 25000 dollars in 2015 to organize physical events. This is happening in a context where the ministry of health do not have any internal budget for this kind of event. The local representation of WHO makes about 2000 dollars only available for this kind of event. In the organization of those offline events, community members hold\xa0a lot of power in the process.', u'entity_id': 21489, u'annotation_id': 10687, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'Everyone around me seemed to manage just fine, effortlessly juggling scholastic and social expectations. So I thought it must be my fault that I was barely holding it together. I was ashamed to admit that I was struggling and ask for help. When I finally gathered enough courage to talk openly about my problems with my friends and family members, I was stunned how much it resonated. Once I had shared my troubles, many of them would admit some of their own. These were people that I had known for more than 10 years, people that I thought I knew inside out, suddenly telling me about insecurities of theirs that I never even suspected them to have. Such moments of connection were a very special experience.', u'entity_id': 677, u'annotation_id': 10686, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'The World Wide Web is increasingly useful to experiment, produce and research for identities, relations and objects in the field of "Healthcare & Innovation" such as Open Source, Open Access, 3D printing and Additive manufacturing, HCWH (Health Care Without Harm), Augmented and Virtual Reality, Co-Working, Workscaping and other important and emerging issues. The bet of PUNTOZERO is to call for interest and shape a networking model motivating healthcare professionals in sharing experiences and co-driving innovation and care programs together with patients and open networks.\nRead our agenda.\nThe idea at the core of PUNTOZERO is that there are still often missing masses -mainly issues and narratives stood and promoted by citizens and patients- in healthcare sets and education curricula. Such issues turn to be interesting especially when dealing about and advocating for innovation, open source and access, DIY, networking, collaboration, communities of practice, etc... Healthcare professions students handle and study subjects and programs about "healthcare", but often are not trained and motivated in practice to collaboration and innovation, for a better understanding of the society and such fast-changing world. The web represents a formidable "umwelt" for those who like to experiment, network and collaborate even in the field of health information, prevention and biomedical research. It is time to promote open care practices in medical schools, nurse schools and hospitals as well.', u'entity_id': 686, u'annotation_id': 10685, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'The Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their \u201cMinerva Talk\u201d, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.', u'entity_id': 724, u'annotation_id': 10684, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u"Due to lack of widespread support, some of the women organize support groups on online forums. They look for other women who seek\xa0abortions or just had one, share their stories\xa0and explain to each other what happens to their bodies, how to access drugs, if nausea is a normal reaction to pills, etc. As in some cases, pharmacological abortion can lead to prolonged bleeding and even death, they offer each other a call of support during the abortion, which takes up to a day. It's recommended to call for an ambulance in case of emergency - doctors cannot tell if the miscarriage was illegally inducted or not, and that save\xa0lives in some\xa0instances of home abortions.\xa0\nI am still reading some more about the abortion underground in Poland, and if I find some more interesting facts, I will updated this text. I also encourage you to share your stories on how women access abortion in countries with restrictive law.", u'entity_id': 793, u'annotation_id': 10683, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'I don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can', u'entity_id': 18565, u'annotation_id': 10682, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'There is something in spoken expression, being listened to and accepted that is\xa0just vital for emotional processing. With a few technologists I\xa0prototyped some systems that used voice recordings to play back these "real" expressions to others.\xa0Again the emphasis was not on mental illness but on the similarities and the differences in the\xa0longings of the inhabitants of particular locations - the project was inspired by thinking about\xa0how it might be possible to\xa0make networks in Nepal that in some way help\xa0the expression and social processing of the shock around the earthquake.\xa0However,\xa0there had been a depth in\xa0the experience of the interchanges that had happened\xa0whilst\xa0making the recordings that were\xa0more interesting than the voice playback system. The interviews\xa0always came out of a "live" sharing of experience (ie. the interviewee\'s expeirences and my own) and involved risk,\xa0personal disclosure,\xa0agency and shared discovery in a way that listening to a recording does not.\xa0I am still wondering about\xa0digital systems that allow\xa0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\xa0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\xa0Witnessed formal\xa0statements - like rituals - can create marker points in people\'s lives.\xa0Alchoholic\'s anonymous is probably a relevant example.\xa0I wondered about the Samaritans model which sets up this sense that you can make a telephone\xa0call if you are desperate and the "Samaritan" is steady,\xa0sane and absolutely OK. I wonder about\xa0a network\xa0that simply says: whatever you are going through is part of the human experience ie. there is no\xa0broken experience, but there certainly is incredibly challenging experience.', u'entity_id': 16456, u'annotation_id': 10681, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing\xa0 exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.", u'entity_id': 29079, u'annotation_id': 10679, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'Malagasy parents used to tell stories and legends to give wisdom, advice and knowledge to their children. When there were some schools appearing they thought that a story is not enough to raise their own child. Wisdom came before knowledge for Malagasy people. As Malagasy are saying "Let your behavior be like a tree: if the roots are strong enough, leaves can shake as they want." \xa0Parents decided to send children to school and encourage them to go further as long as they can support them. In fact having a son or daughter graduate from University is an honor for parents and children, it means that both are successful. In that time, to accept a job opportunity easily, leaving the familial cid and flying with their own wings is easier.', u'entity_id': 746, u'annotation_id': 10678, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'One point that set it apart from PU is that this one is more geared towards information flow BACK to the party doing an intervention. The idea is that staff will get a handful of mp3 players (and colored pearls for stringing up) with say 2-3 different sets of "directions" to traverse the OFFLINE social networks to carry on them at all times. When they come across an "interesting person" (e.g. very altruistic behavior, subject to certain condition, etc.) they can, without a word, hand them the mp3 player and things can expand from there. With the right incentives (perhaps including m-pesa) there is potential for large amounts of very detailed quant (coded with the colored pearls) + qual that should be relatively undistorted.', u'entity_id': 27320, u'annotation_id': 10677, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'I\'m currently working on putting together a prototype kit that could plausibly run for a couple of months (and with minor support perhaps years) as a replacement for a "sit-in school" in remote areas that have trouble with teacher absenteeism ( @Nadia perhaps interesting to Olivier @ Co - also best of luck in Paris!) and people being too poor to abstain from manual labour for so long (and of course blind, illiterate, etc.). At the moment I\'m checking the recharge curves to see how long the cheapo players will survive before someone needds to know how to fix/replace/work around the battery. If any of you see potential there I\'d be happy to discuss it and set it up as a proper story.', u'entity_id': 26057, u'annotation_id': 10676, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'This\xa0comment sums it up for me. Conversation and understanding turn coping into progress.', u'entity_id': 15934, u'annotation_id': 10675, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'When I ask Ngala what networked technologies could do to help these efforts he replies that they could help facilitate expression: \u201cIn this work there are problems, most of them could be solved through sharing. When survivors are given opportunities to share their stories they heal fast. Networks would provide a good platform for people to share their experiences. Sharing could be done through writing or be spoken. Narrations could be recorded and later could be used to make short clips.\u201d I think of just how possible this is as it is poses a clear and actionable technological problem, but looking at Ngala I wonder whether he realises how key his presence is to the process and the quality of the interaction. What forges the profound shifts in people\u2019s experience is how their expression is received, listened to, validated and responded to. When speaking with Ngala, a man with vast generosity of soul and focused attention, you really do feel stronger. He beams at you and honours your presence in a way that is rare. In conversation with him you feel that your words matter, your life is respected and that miraculous healing is possible. Popular culture tends to talk about purging emotions, as if emotions are toxic material that needs ejecting from your system, but what Ngala\u2019s work shows is that the magic is in the courage to speak honestly and the grace of being heard: that\u2019s when emotions turn into understanding. The human catalysts at TICAH are so much a part of why these reconciliation attempts have been successful and any attempt to extend the work through technology needs to factor this in at the centre.', u'entity_id': 553, u'annotation_id': 10674, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'But Ngala describes his methodology when convening these meetings as based on simplicity: \u201cit is rooted in listening to one another and honouring each life story.\u201d His role as the third party, guiding the conversation, ensuring that each person spoke and was listened to has had truly beneficial effects. He tells me that some who have gone through the process visit each other and share their childhood stories or are able to meet at public occasions.', u'entity_id': 553, u'annotation_id': 10673, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'Besides stories over everyday rituals like tea and Syrian home traditions', u'entity_id': 703, u'annotation_id': 10671, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'In these small, intimate moments people open up to you. Some share stories, opinions on the camp or photos from their phones. Some photos are of family and home. Some photos are graphic images of violence and bloodshed. You never know if these images are from their own experience, or if they are from external sources. Almost every refugee can connect to the internet and people share images amongst groups. You know it would be rude to ask for verification. You are frequently reminded not to push anyone to tell you about their life before, or their journey. You are not a therapist and reliving traumatic experiences can re-traumatise them.', u'entity_id': 536, u'annotation_id': 10670, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 12132, u'annotation_id': 10667, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 10666, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'\u201cWe talked about personal experiences. Because of this we came to many topics- like how it is to be a European or come from another continent. It was nice because we had an open chat with one another, so we had some long discussions. It was nice to hear about other people\u2019s stories because sometimes you don\u2019t talk about it for long, but when you do it for one hour and you have some perspectives on how to give care for refugees but also what it\u2019s like to be a foreigner in Germany.\u201d', u'entity_id': 494, u'annotation_id': 10665, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'Sharing care experiences.\xa0\n\n\n\xa0\n\n\nWhat does this mean for narratives of care?', u'entity_id': 5405, u'annotation_id': 10662, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'\u2192 If I was a combatant, I can share my story first then be better equipped to support the combatant I work with.\xa0\n\n\n\u2192 Create a link through storytelling fro better care?', u'entity_id': 5405, u'annotation_id': 10661, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'When does storytelling create empathy? What are the conditions? That it create a connexion to the other person\u2019s circumstances.', u'entity_id': 5405, u'annotation_id': 10660, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'We share their stories online and engage the internet in making sense of the challenges they face, as well as identifying fixes/hacks/solutions/new projects. Part of this is sharing specifications, doing requirements engineering and the necessary background research to determine viability of different proposals.', u'entity_id': 5463, u'annotation_id': 10659, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'These stories are designed as informative case studies with a specific call for action from the broader community.', u'entity_id': 5463, u'annotation_id': 10658, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'collect experiences of community-driven care services\nvalidate them through open discussion, both online and offline.', u'entity_id': 5510, u'annotation_id': 10657, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u"A Recollection- I asked a few questions and this was the result of our conversation.\n\n\u201cAfter meeting Carry and getting to know one another and sharing the challenges and realizing they were similar including the internet for answers. We realized that information was scattered and more importantly we realized there must be others just like us. Searching for answers and support or exchange of conversation.If something works for us, maybe it could help someone else who is in that unknown space. Sharing valuable information and treatment options are things that we would welcome. We thought we there must be others who were searching for answers as well. Nothing should be left up to chance. We decided that we wanted to help the next person who was affected and change the way people deal with cancer\u201d.I can recall an appointment at the hospital, where we were going to speak with a dietician for advice-which ended up not with insufficient information. We asked various questions, and shocked by the answers\u201d.\n\nWe both loved sports, maintained a healthy diet and wanted to retain as much of our daily lives as possible prior to diagnosis while undergoing treatment. So we went online and the journey began\u201d.\n\nWhat prompted the action?  \u201cWe wondered if all cancer patients struggled with the information provided on nutrition and exercise during treatment. We knew healthy eating and nutrition support can improve a patient's quality of life during cancer treatment. But we could not find a platform to discuss these issues, exchange experiences and see what works for someone else.  We all could learn from one another.  So we put our thoughts together and experiences so far and decided to start a community that could benefit from each other\u201d. \n\nWhat is the mission of CoreCareCollective? \u201cOur mission is to empower anyone who has been affected by cancer. To provide a space with the ability to connect and share personal experiences about cancer with others who understand. Our community would be 100% user-generated and engages all who are involved in a person\u2019s cancer fight: the survivors, fighters, supporters, and caregivers\u201d. \n\n\u201cEvery person who faces cancer has a story. This would be a space where the individual and collective voices impacted by cancer can be heard and shared to meet the social and emotional needs of patients, families, and caregivers throughout their journey\u201d. \n\nI had asked who else would be in collaboration, this was her response, and \u201cThe platform will honour the individual experience and create a community of understanding that extends to the entire health care delivery system\u201d.  \n\nWho do you want to reach? \u201cPeople around the world that want to share their experiences and sharing their strength\u201d. \n\nDenise and Carry have the vision to improve how cancer patients receive care and to collaborate and create a cancer support community that empowers people to take control of life before, during and after treatment. This support is crucial in allowing survivors, fighters and caregivers to share experiences with foods, treatment, side effects, long term effects and more.\n\nIt is their hope that every person and family battling cancer will reach out to the many others who want to help and get connected to a community that cares. Sharing the stories each with a promising and innovative approach to reinvent healthcare.\n\nI should end on a note with the essence of transparency, Denise and Carry, two strong and powerful women had their lives turned upside down decided to take their time and focus on feeling well and take an active role in improving their well-being. They decided to take a step back to move forward, at their own pace. So at present CoreCareCollective is waiting to be birthed. There are a plethora of platforms available to cancer patients and their families. But not all are created equally or intended to serve the same purpose. Updates on this project will be shared as they develop.", u'entity_id': 35903, u'annotation_id': 11596, u'tag_id': 2212, u'entity_type': u'post'}, {u'quote': u'Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\xa0experiencing states that were\xa0"abnormal" or could be classed as\xa0"mentally ill")\xa0felt like a helpful thing -\xa0the urge to have one\'s experience understood unites everyone.', u'entity_id': 16456, u'annotation_id': 10680, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'We can only hope that the people bringing back the good stories will be more credible and cooler than those bringing back the bad ones. This way, we can win over more of the new generation \u2013 aim at cultural hegemony, in other words.', u'entity_id': 21716, u'annotation_id': 10669, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u"makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?", u'entity_id': 19778, u'annotation_id': 10668, u'tag_id': 2212, u'entity_type': u'comment'}, {u'quote': u'Storytelling is also what I argued for, to Costantino and Alessandro in Milano: someone that translates what makers dont have the time into an accurate entry about their work. This is in less citizen journalism and engaging documentation that goes beyond note taking. While your\xa0citizen journalism idea is another way of adding a personal voice to the online conversation, the requirement for a structured research like OpenCare is that it needs to capture more viewpoints of more people who are in an offline environment. So a storyteller would bring their own, and incorporating\xa0some\xa0other points. What about the rest of the points which in our data strategy need to be attributed to\xa0distinct\xa0users?\nSo what I recommended was a storyteller that plays the interviewer at the event, in a similar way that Natalia interviewed people on skype in OpenandChange and posted their stories in their name and language.\xa0\nMy assumption is that almost anyone, including a technical person, would be able to articulate even half baked ideas about how they work if asked pertinent questions over a friendly, informal conversation.\n@Alberto I especially like point 2) modeling online-offline. Sign me up for that.', u'entity_id': 17100, u'annotation_id': 10693, u'tag_id': 1626, u'entity_type': u'comment'}, {u'quote': u"I read a peace lately , in french, about bringing back the 'journalisme flaneur', a person between a tourist (in the broader sence of the word)\xa0and note taker.\xa0\n\nThe way that person looks at an event is different, he or she is trying to give a sence to what he or she is seeing at the moment while moving between the conversations, it's a less objective note taking, but a richer experience for the reader i think.\xa0\nAnd to link it with the offline , i think we need the same kind of person, a storyteller more then a speaker. Somebody that make a story live through his experiences. The term 'conteur' in french is the best word to describe that.", u'entity_id': 14343, u'annotation_id': 10692, u'tag_id': 1626, u'entity_type': u'comment'}, {u'quote': u'I re-read the paper and made myself a map of the story with Tulip, extracting names of persons and/or organizations by hand. The grouped nodes with outer/inner labels is one of the marvelous things you can do with the software', u'entity_id': 23566, u'annotation_id': 10695, u'tag_id': 1627, u'entity_type': u'comment'}, {u'quote': u'You seem to have stumbled into networks as a storytelling technique. Of course all visualisations tell stories, but in OpenCare we are telling stories of collaboration and interconnectedness, so networks work particularly well.\xa0Is it worth doing some work on, trying to come up with self-explanatory visualizations?', u'entity_id': 17129, u'annotation_id': 10694, u'tag_id': 1627, u'entity_type': u'comment'}, {u'quote': u'This may sound obvious, but I guess one main approach is to find some point in common. Yes, the two people may come from completely different backgrounds, but there are so many aspects to life that, if we look at enough areas of life, it is extremely unlikely that nothing at all is shared.\n\nAlternatively, try exploring questions which mean a lot to almost everyone. See e.g. https://www.indy100.com/article/the-36-questions-to-ask-that-will-make-anyone-fall-in-love-with-you--gJVkNnfRcg\n\nSee what happened to one person trying this out in this TED talk...', u'entity_id': 26013, u'annotation_id': 13063, u'tag_id': 1628, u'entity_type': u'comment'}, {u'quote': u'A friend of mine, expat living in Cluj, has\xa0similar questions to yours and he\'s starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\xa0events branded as such -\xa0"you should spend time with strangers, it\'s healthy and fun".', u'entity_id': 7822, u'annotation_id': 10699, u'tag_id': 1628, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23506, u'annotation_id': 10698, u'tag_id': 1628, u'entity_type': u'comment'}, {u'quote': u'So, to make strangers connect, a sensible strategy seems to be to "think like a hacker" and\xa0exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem\xa0to be hardwired for forming groups. It is very, very easy to make humans behave like a group \u2013 check out Wilfred Bion\'s work for that.', u'entity_id': 19934, u'annotation_id': 10697, u'tag_id': 1628, u'entity_type': u'comment'}, {u'quote': u'A very basic event which happened in a lot of cities over the last years, including\xa0where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one\xa0would\xa0stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in.\nMore about this and a video:\xa0https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/', u'entity_id': 14948, u'annotation_id': 10696, u'tag_id': 1628, u'entity_type': u'comment'}, {u'quote': u"Wow - congratulations on the World Bank bid. That's huge.. It would be great to dig deeper into these kind of strategies. It would be great to see your past funding applications.\nI had a conversation with Shannon Doesmagen (PublicLab executive director) recently - they frequently act as fiscal sponsor for other projects, fielding a lot of funding from private foundations and donors, very occasionally public funding (they're based in the US). Most recently they've been managing a lot of funding that has come in for the Environmental Data Governance Initiative (EDGI). It's a little different, but the same trust issues apply. I think they would also be happy to share the details of their practices.\nIn Germany, Open Knowledge Foundation fairly recently launched their Prototype Fund, which distributes funding from the German Education and Research ministry to smaller civic tech projects. Again, similar but different. I could see what I can find out about that as well.\nNeither of those are so clearly about ecosystems or focussed collective action between smaller initiatives, as edgeryders is. But interesting nonetheless. I think this could be a really interesting and practical discussion.", u'entity_id': 14809, u'annotation_id': 10703, u'tag_id': 1629, u'entity_type': u'comment'}, {u'quote': u"A little context: Last year we ran a small experiment to build a collective bid for the MacArthur Foundation's 100 Million USD grant. Edgeryders wrote the meta application, and then set up a simple process through which projects could attach themselves to the bid (approx requirement of work for each participating project=\xa02.5hr). The Edgeryders organisation was the organisation which would then take responsibility for managing the funds.\xa0We did manage to get past the first round (administrative due diligence). It was a good way to go about it in that it also helped us better understand what people in the OpenCare/broader Edgeryders community need. The design of the OpenVillage festival is based on what we learned.\nI don't know if you saw that we just won a World Bank bid. The work we will be doing will build on this idea of nurturing initiatives as part of a collective effort towards something. We're still learning how to do this, but the results so far are promising. So maybe it could make sense to dedicate a session to sharing strategies, even past funding applications that worked for remixing etc...", u'entity_id': 7509, u'annotation_id': 10702, u'tag_id': 1629, u'entity_type': u'comment'}, {u'quote': u'Just to agree that finding a common language might go a long way with groups that may not be as radical/ adamant in their approaches to not cooperate with state led operations, but rather expose them as irrelevant. I find this quite strong and while some edgeryders will resonate immediately, the rest of us may not know just how to engage even if they resonate with the premises (and keep a different view on the ways, for example me, I got the most out of\xa0the FLOSS vanilla interview).', u'entity_id': 18401, u'annotation_id': 10701, u'tag_id': 1629, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 17588, u'annotation_id': 10700, u'tag_id': 1629, u'entity_type': u'comment'}, {u'quote': u'My name is Nabeel Petersen, a South African citizen on a mission to design and test novel methods for Science Communication, Research and to foster collaboration and stimulate dialogue. I have been employed in the non profit sector as a Project Manager on various projects, after having explored and tested theatrical/drama techniques and incorporating that into Science Communication and Health Messaging. And let me tell you, I am completely motivated and inspired by this community and others toward this goal and Public Engagement.\nMy experience as a process facilitator includes various participatory methods including: photovoice, drama, collaborative/participatory video, workshop design and events design. I\'ve resigned from my formal job in order to test additional methods which I believe have the power to stimulate dialogue, forge relationships across difference sectors and reach larger audiences in organic, fun and interactive means.\nSince resigning from my formal employment, I\'ve begun developing concepts using Street Arts and collaborations to install live arts installations driven toward Public Engagement. Now, Public Engagement as a term itself is not void of ambiguity and misuse for the purpose of funding or green-stamping our professional works. This isn\'t anyone\'s fault as it\'s a field that is developing. We should strive for full participation in our works, not merely using the term as a stamp of approval. My project aims to forge relationships with very different bodies of knowledge and social status, i.e. biomedical professionals/scientists, community members and artists, all of whom I argue have equally important and necessary knowledge to combat illness, increase the status of general Public Health and, simply put, fight a battle using a full arsenal of knowledge and weapons.\xa0\n\nAllow me to rewind, ever so slightly to paint a picture. I\'ve previously sought to test photovoice as a participatory method by forging relationships with community members from an under-resourced community in Cape Town, South Africa, and Scientists from the University of the Western Cape. The project sought to bring these varied parties together in a participatory workshop process, after which community members were trained on DSLR cameras and instructed to capture the lived experience of food in their everyday lives. They could capture anything related but not limited to\xa0the purchase, consumption or disposal of food. This project revolved around Cardiovascular disease and the Scientists involved were Seniors at the Cardiovascular Research Unit at the University of Stellenbosch. The array of visual material and accompanying narrative was phenomenal and utterly beautiful. It shed light on the constant negotiation of food and consumption in these communities, including the availability of food, what kind of food was deemed healthy or not, when it was suitable for food to be disposed, food as celebration and community building etc. To me, and the Scientists involved, this process unveiled knowledge on food consumption behaviour and more structural issues imposed on these communities. It was never simply a "I want KFC and I shall buy KFC". This food choice is always compounded by budget, compromise, available options, time of the month, etc. People are consciously and constantly negotiating and re-negotiating choices. My heart broke when a Senior member of the project sample pulled me aside mid-project and told me ...\n"Nabeel, I\'ve suffered from Type 2 Diabetes for 15 years. At least thats what the doctors told me. They gave me medication and send me away each month. But never before has anyone told me what Diabetes is in a way that I understand. Never before have they taken time to talk with me. But now I have these scientists in my backyard. And they can\'t leave until I know my body"...\nIt\'s necessary to point out that even though this community has an approximate population of 100 000 it only has one superstore that either of us would immediately turn our back on. Most food products are sourced from small kiosks on the corners. Yes, I am still in shock. How and why are the most vulnerable excluded from knowledge and provision of services? An alarm bell rang in my head that I could not ignore since I resigned. We\'ve been running projects with a very specific agenda which more often than not in the non-profit sector provides an income and life for the administering organization. The sad truth is peoples knowledge are not given the kudos and respect it desperately needs. And in this battle, that may just be our most prize weapon.\xa0\nFastforward 8 months and I\'ve developed a concept which: 1. aims to bring 3 very different bodies of knowledge together in a participatory,\xa0collaborative and egalitarian process; 2. forge relationships between these traditionally-deemed exclusive fields, i.e. arts and science and; 3. test organic and participatory processes to create events and arts installations that extends this knowlege to a broader audience in a fun interactive means.\nNow. Back to my current project...\xa0\nI have recently collaborated with the University of Cape Town\'s Swallowing the World project which is a curatorial project focused on the lived experience of TB. My team of graffiti artists and I joined the festival, set up 2.5 x 2.5m canvas in the middle of campus and contributed to this project on International TB Day. As the focus of the fest was on Destigmatization, we followed suit and allowed interaction between the audience and ourselves to influence or define the artpiece. A\xa0short video of our work:\n\n\n\n\xa0\nThis project will be installed in South Africa, India and Botswana simultaneously and attempts to use culturally- and community-sensitve street art forms. As such, we are holding participatory principles as central to the success of the project as we would like to design the project trajectory, outcomes and art installations/events with all participants. You may be thinking that no Funder finds this ideal. Alas, we\'re all wrong. We have had alot of interaction with a potential funder who chose to view the testing phase on UCT in livetime. This live time viewing feature of our project is something we would want to function very much like Edgeryders as it allows for collaborations and creativity between individuals and entities that may not traditionally interact.\xa0\nThis leaves me at your feet as I\'d love feedback, interaction and potentially consider collaborations with not only this project but others moving forward. I\'d love to work in varying contexts and establish relationships between and across scientists, community members and artists from varying countries. This will be my next step. Apart from the actual arts installations and events, as products, we will be developing a best practices publication focused on the entire project in each 3 countries. I will also carry my "researcher" hat for the duration of this project as I wish to study: the interaction;\xa0immediate knowledge transfer between scientists, community members and artists; retained knowledge and overall impact. I would openly accept any suggestions or feedback...\xa0\nFor now I continue on my mission to test community- sensitive and -relevant means of expression and trying to find ways of using those tried and tested methods as communication tools. After all, what we want are healthier , expressive and inclusive communities whether you choose to define that territorially or otherwise. Only together can we progress...', u'entity_id': 33730, u'annotation_id': 10704, u'tag_id': 1630, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14908, u'annotation_id': 10708, u'tag_id': 1631, u'entity_type': u'comment'}, {u'quote': u"Social streets: We heard about social streets not long ago via Giulia Ganugi. She's a PhD student Sociology in Bologna. Her research is about the Social Street phenomenon, born in Bologna three years ago and spreaded throughout Italy and the world. She visited us in Ghent to know more about the Living Street-experiment.", u'entity_id': 33778, u'annotation_id': 10707, u'tag_id': 1631, u'entity_type': u'comment'}, {u'quote': u'\u201cLocal authorities are no longer perceived as the only party expected to solve complex issues in cities\u201d (source)\nThis post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens.\nLiving Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people\u2019s relationship with city officials.', u'entity_id': 33746, u'annotation_id': 10706, u'tag_id': 1631, u'entity_type': u'post'}, {u'quote': u'Description:\n\nStress is inevitable. It walks in and out of our lives on a regular basis. A burnout is a mixture of professional exhaustion, and disillusionment with other people, the organization, or the career, over the long term.\n\nFortunately, there are many things you can do to minimize and cope with stress and learn how to avoid a burnout.\n\nMain Aims:\n\n\nCareer guidance and counselling\nCombating failure in education\nFight against school/university failure & link school/university and work\nInclusive approaches\nPedagogy and didactics\nSchool/university improvement & quality evaluation\n\n\nSpecific objectives of the course are: \uf0b7 Introduce holistic model of stress and raise understanding of stress causes, mechanisms and effects \uf0b7 Raise understanding of how stress impacts teaching ability \uf0b7 Provide the participants with practical tools for dealing with stress \uf0b7 Reduce the consequences of stress (such as poor health, absenteeism, lack of creativity, ineffective communication, inability to focus, more conflicts etc.) and develop healthy ways of dealing with everyday work demands \uf0b7 Prevent burn-out syndrome in educators \uf0b7 Enhance emotional self-awareness \uf0b7 Introduce practical tools for coping with difficult emotions \uf0b7 Improve the participants\u2019 emotional balance \uf0b7 Help the participants to identify their stress triggers and emotional triggers at work context and come up with new, more resourceful strategies \uf0b7 Enhance in the participants the ability to relax \uf0b7 Broaden the understanding of health\n\nProgramme Elements:\n\n\nIntroduction and course overview\nIce breaking\nIndividual expectations\nWhat is stress?\nDefinitions\nUnderstanding the stress response (fight/flight versus prolonged stress)\nPhysical, emotional, mental and behavioural symptoms of stress\nRelation between our thinking and stress\nEffective and ineffective ways of dealing with stress\nRelaxation exercises that help to manage stress effectively \u2013 part 1\nThe impact of emotions on teaching and learning ability\nTools for dealing with disturbing emotions\nEffects of stress in educational setting\nAssessing your personal stress triggers\nChanging not resourceful strategies\nSelf-talk awareness\nRelaxation exercises - part 2\nHow can I be more mindful and resourceful in the classroom? \u2013 action plan\nSummary, course evaluation and closure\n\n\nACTIVITIES TO BE CARRIED OUT BY THE PARTICIPANT\n\nBefore\n\nParticipants will receive a list of study material prior to their arrival for the seminar along with the links for the websites which are relevant to the content of the course.\n\nDuring\n\nThe course will provide theory necessary to understand the nature of stress as well as practical tools for managing stress and difficult emotions. Attention will be given on how to implement the findings and skills in real life situations after the seminar.\n\nMethods such as debate, role play, body movement, individual mind management technologies, pair and group exercises and mini -coaching will be used throughout the course.\n\nThe methodology of the course includes learner \u2013 centered approach and utilizes self-learning methods.\n\nThe aim of the course is not to produce ready-made solutions (passive learning), but to inspire the participants to search creatively for knowledge and effective solutions which are connected with their needs and challenges (active learning). In this way the participants take responsibility for their own learning process and act as active partners of the course.\n\nAfter\n\nThe participants will be encouraged to form a network in order to continue an exchange of ideas and support one another. Up to 6 months after completion of the workshop, the participants will have an opportunity to ask for advice (via email or Skype) if they face obstacles in using the new skills or if they have any questions or concerns.', u'entity_id': 6293, u'annotation_id': 13066, u'tag_id': 2214, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 778, u'annotation_id': 13065, u'tag_id': 2214, u'entity_type': u'post'}, {u'quote': u"Hello, @Georgiana_B. \xa0, and welcome. I don't think I have read anything by you before. You make some excellent points, particularly that of artists sharing some of those stress-inducing working conditions with non-artists. You mention art workers; where I come from (Italy) there is similar talk around freelancers.", u'entity_id': 32197, u'annotation_id': 13064, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'But to conclude, I\u2019d say that once clarified what aspects you guys are more interested in working with, there would be specific/ specialized ways to enable care and help. It might be that it is not even relevant if the creative field is more prone to anxiety than others, but wanting to reduce these big emotional costs would require a particular approach, one that suits the idiosyncrasies of the field. I\u2019d be very interested to contribute within my own area of knowledge and experience -\xa0I say there\u2019s a strong need for open care structures here.', u'entity_id': 32092, u'annotation_id': 10726, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'What an interesting discussion, thx to you all. I agree that stress and suffering are part of life @Noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.', u'entity_id': 31148, u'annotation_id': 10725, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u"Someone like me who is not a creative or art\xa0professional could simply read the emotional stress\xa0as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don't know.", u'entity_id': 21301, u'annotation_id': 10724, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'emotionally', u'entity_id': 680, u'annotation_id': 10723, u'tag_id': 2214, u'entity_type': u'post'}, {u'quote': u'How do we effectively deal with the additional preassure, or emotional stress, that this kind of commitment brings into our lives?', u'entity_id': 19249, u'annotation_id': 10722, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'\u201cIt\u2019s a stressful thing, for sure,\u201d Earley says. \u201cMy blood pressure goes up. It can catch me at any hour of the day. I do feel the weight of dealing with that. But it\u2019s definitely something that feels like it\u2019s important to do. We have the technical infrastructure in place to make it as painless as possible on our end.\u201d', u'entity_id': 19249, u'annotation_id': 10721, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'how do we get people to operate well in high stress enviroments?', u'entity_id': 860, u'annotation_id': 10720, u'tag_id': 2214, u'entity_type': u'post'}, {u'quote': u'Long before I was finally diagnosed with depression 1 year ago, I struggled with intense feelings of stress and self-loathing, feelings that were overwhelming me, because I could not really understand what and why I was experiencing. I consider myself privileged to be born into a comfortable middle class life, to have a supportive family and friends, no academic problems. In theory, I was supposed to be happy. So why was I feeling so paralysed and helpless? Considering there are so many people who have it much worse than me, feeling sad seemed irrational, unjustified and shameful.', u'entity_id': 677, u'annotation_id': 10719, u'tag_id': 2214, u'entity_type': u'post'}, {u'quote': u'The issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students.\nAs part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned\xa0that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support\xa0when everyone tries to hide their struggles.\nAs a result, most people\xa0don\u2019t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves.\nYet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence,\xa0stemming from a general lack of awareness.', u'entity_id': 511, u'annotation_id': 10718, u'tag_id': 2214, u'entity_type': u'post'}, {u'quote': u'Then, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I\u2019m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist\u2019s own\xa0sense of identity as an artist), market/ commercialization contamination and so on.', u'entity_id': 32092, u'annotation_id': 10715, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'What an interesting discussion, thx to you all. I agree that stress and suffering are part of life @Noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.', u'entity_id': 31148, u'annotation_id': 10714, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u"you make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of\xa0these issues popping up in our immediate surrounding\xa0during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right\xa0context to explore this\xa0or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much\xa0appreciated!", u'entity_id': 21954, u'annotation_id': 10713, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u"Someone like me who is not a creative or art\xa0professional could simply read the emotional stress\xa0as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don't know.", u'entity_id': 21301, u'annotation_id': 10712, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'how much art school is stressing me', u'entity_id': 680, u'annotation_id': 10711, u'tag_id': 2214, u'entity_type': u'post'}, {u'quote': u"In\xa0our current line of work there is some of the persistent, low-level panic of the artist's work, because there are fads in consultancy, and people hustle, and it's important to be seen in the right places. But the market is NOT winner-takes-it-all. Companies\xa0need help, and they can't all get the top ten guys in the business, because those guys can only sell 100% of their time.", u'entity_id': 32271, u'annotation_id': 10717, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u"You pointed out so well that being poor, scared and stressed out is as limiting as not practicing one's art as their profession! It\u2019s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit", u'entity_id': 32270, u'annotation_id': 10716, u'tag_id': 2214, u'entity_type': u'comment'}, {u'quote': u'stroke or spinal cord injury (SCI)', u'entity_id': 720, u'annotation_id': 10727, u'tag_id': 1634, u'entity_type': u'post'}, {u'quote': u'thanks for the reply. i totally understand the wish do not get mixed up with organizational structures. and even though i don\'t like the word "governance" too much, i think for a long term survivale of projects, and also to keep them transparent and open, there should be next to the possibility to do also some general rules and mechanism. i also refer here to the idea of the commons, that are often practically related to very clear rules (including sanctions, and instruments to deal with conflict). I think Jo Freemans "the tyranny of structurelessness" (http://www.jofreeman.com/joreen/tyranny.htm) is still - after 40 years -\xa0 relevant, and i also enjoyed reading David Graebers "Utopia of Rules" where he also refers to Freeman.', u'entity_id': 19633, u'annotation_id': 10728, u'tag_id': 1635, u'entity_type': u'comment'}, {u'quote': u'An American-Egyptian, into educational partnerships on the edge and data analytics for evaluation. Helps run a mental health support programme for students, as he is enrolled himself at the online Minerva university in Buenos Aires, in a 4 years program where the first six months are in Argentina, then one gets to move in seven different countries, from US all the way to Europe and Asia.', u'entity_id': 6360, u'annotation_id': 10743, u'tag_id': 1636, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 10742, u'tag_id': 1636, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 10741, u'tag_id': 1636, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7855, u'annotation_id': 10740, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 575, u'annotation_id': 10739, u'tag_id': 1636, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 833, u'annotation_id': 10738, u'tag_id': 1636, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 31152, u'annotation_id': 10737, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29967, u'annotation_id': 10736, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 29086, u'annotation_id': 10735, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27829, u'annotation_id': 10734, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20209, u'annotation_id': 10733, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 14770, u'annotation_id': 10732, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 7571, u'annotation_id': 10731, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u'The newly established School of Design attracted some 4,000 students which increased the demand for daily, standard, low cost services. That is what today Bovisa offers for the most, since the majority of the students live somewhere else. When students are off the district it changes its face: bookshops, fast food, bars, copy centres are closed and leave the district lifeless.', u'entity_id': 832, u'annotation_id': 10730, u'tag_id': 1636, u'entity_type': u'post'}, {u'quote': u'Being a university student \u2013 as you know -- can be a difficult balancing act. It is easy to get weighed down with the pressures of academics, social life, and choosing a major and so on.\xa0 If personal problems are piled on top of these pressures, it\u2019s easy to get overwhelmed. There were different groups and workshops which made it easy for them to identify with.', u'entity_id': 27824, u'annotation_id': 10729, u'tag_id': 1636, u'entity_type': u'comment'}, {u'quote': u"@Alex_Levene and @Aravella_Salonikidou (and whoever is interested), let's all make a note to go deeper into the notion of suboptimality. I think it could be important. Normal policy is that\xa0fast, messy, large scale response has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans. If we can make a case for this to be the wrong thing to do in some case, it is goping to be an important policy contribution.", u'entity_id': 19220, u'annotation_id': 13067, u'tag_id': 2215, u'entity_type': u'comment'}, {u'quote': u'Just a few thoughts on suboptimality to hopefully\xa0drive the discussion around this topic.\nIt is\xa0the case from Alberto\'s comment\xa0that "fast, messy, large scale response\xa0has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans"\nIt seems that this is true in\xa0cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa) The above examples are plans for\xa0disasters that occur frequently and regularly in places that share a geographic similarity or border.\xa0It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas.\nBut,\xa0in order for us to \'leave it to the professional\' there have to be NGO\'s willing, and able to step into that role in the space.\nWhat has happened in\xa0Greece and Calais is\xa0we have seen NGOs step up initially, but then step back from the problem.\xa0Often because they cannot work with the changing political situation. I am thinking here of\xa0MSF pulling out of\xa0Lesvos after\xa0the EU-Turkey repatriation deal occurred. (http://www.msf.org.uk/article/why-is-msf-closing-its-moria-project-on-lesvos)\nThe French government\'s\xa0reluctance to acknowledge the legitimacy of the Calais camp\xa0has created\xa0a\xa0vacuum.\xa0So,\xa0NGOs have struggled to work in that area. Because they cannot work\xa0under license, they cannot reduce\xa0the suffering there, except on a micro\xa0scale.\nPerhaps the idea of sub-optimality in the system comes back to a\xa0wider\xa0idea. One that is floating around in other areas of the site, that of \'unlicensed behavior\'. Once\xa0an organisation or NGO becomes \'legitimate\',\xa0it tends to deal\xa0with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly).\xa0It becomes more constrained to\xa0do\xa0things \'the correct\xa0way\' and less able to focus\xa0on doing what is required.\nWhen there isn\'t a precident\xa0for dealing with a disaster on the scale or in that location two options remain. Either improvise or adapt. Both options work with sub-optimality from different directions.\xa0\nThe NGO is most likely to adapt. They will find solutions used in other areas, or to address different problems, and adapt them to the new situation. These solutions are \'tried and tested\' and so they can point to evidence that shows where they have worked in the past. The NGO avoids looking bad\xa0if this approach fails, because they can show ways it has worked before. Their cultural and political capital stays strong and they can work on a new response in the long term. I expect that the lessons learned by MSF et al during this decade\'s\xa0refugee crisis in Europe will lead to contingency plans that will be used around the globe in the future. They struggle to deal with the problem in real time though.\nAt the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to\xa0fail\xa0because they have no social or political capital to diminish, except with the people they work with directly.\xa0This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece.\nWhat is required is a way of feeding the experiences and innovation prototyped by the improvised,\xa0citizen-led organisation\xa0into the institutional learning of\xa0NGOs', u'entity_id': 19227, u'annotation_id': 10747, u'tag_id': 2215, u'entity_type': u'comment'}, {u'quote': u"I think there's a lot to be said about suboptimality when it come to care and response. I will have a think and put some words together for you.", u'entity_id': 19222, u'annotation_id': 10746, u'tag_id': 2215, u'entity_type': u'comment'}, {u'quote': u'"So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help"', u'entity_id': 19203, u'annotation_id': 10745, u'tag_id': 2215, u'entity_type': u'comment'}, {u'quote': u'What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.', u'entity_id': 19161, u'annotation_id': 10744, u'tag_id': 2215, u'entity_type': u'comment'}, {u'quote': u'My friend Deirdre was very successful academically but struggled feeling the engineering course she was doing was cold and soulless. In correspondence back and over we discussed how banal many of the subjects were and did she really want to end up as an engineer instead of something with more soul like a musician or writer. Deirdre took a year out in 3rd year and worked with IBM. She did well with IBM and returned to Trinity to finish her engineering course and did very well graduating with a first class honours degree. After graduating Deirdre and I didn\u2019t stay in contact as much. A bit like my father I remember seeing her visit me when I was in the intensive unit in a psychiatric hospital in Dublin. I could tell she found it very hard to see me so unwell and I felt she must have wondered was there a risk of her becoming so unwell. Even though Deirdre had seen me in hospital she still never would discuss with me her own mental health or her hopes or fears. After many months of being out of contact with Deirdre I tried to get in touch with her. There was no reply to her phone or email address. Thinking she might have changed jobs I did an internet search for her name. To my horror I came across a Memorial website to Deirdre. Phoning her parents they confirmed the tragic news. Her father told me the story of Deirdre\u2019s last days. Deirdre has been suffering low mood and nothing anybody could do seemed to help. Worried for her safely her parents asked her to come home to Wexford to visit them, otherwise they would have to insist on visiting her in Dublin. That weekend they did everything to try to lift her mood, visiting family and friends and going to shops and restaurants. However Deirdre went back to Dublin. That Monday her mother phoned her at lunch time. Deirdre said she was going to lunch with work colleagues. However the truth was Deirdre had taken a huge overdose of medication that morning, months\u2019 worth of medication she has stopped taking. When her boyfriend returned home that evening Deirdre was dead. You can\u2019t do an autopsy into someone\u2019s state of mind. Deidre had a great job, a steady boyfriend and had just bought a new apartment.', u'entity_id': 562, u'annotation_id': 10762, u'tag_id': 1638, u'entity_type': u'post'}, {u'quote': u'Many of us have lost loved ones to suicide. The loss is devastating. I lost my father and my friend Deirdre to suicide. My father had been diagnosed with Bipolar and suffered from the condition from middle-age. Looking back I can see the times he was manic or high, singing loudly on the half hour drive to school where he taught every day. I vividly remember during my teenage years his first admission to psychiatric hospital my Dad weeping with happiness when he was released home on leave for a few days at Christmas.', u'entity_id': 562, u'annotation_id': 10761, u'tag_id': 1638, u'entity_type': u'post'}, {u'quote': u'Noemi mentioned how deep suicide is in Ireland both among males and females, as well as it is underreported - it\u2019s not even ranking top in Europe (like former Soviet countries). Pauline added that in Sweden, suicide is the most common cause of death in people between 18-35. Costantino said this was dangerous to approach in OpenCare, even though we know it\u2019s increasingly being flagged in the tech activist sector (see re:Publica session Hacking with Care).', u'entity_id': 5658, u'annotation_id': 10760, u'tag_id': 1638, u'entity_type': u'post'}, {u'quote': u'Strong mutual care is essential not only in places seeking to recover from atrocities, but generally for\xa0people working together and sharing space, especially if they are "living on the edge". Change is difficult and every group\xa0liable to conflict. E.C. Whitmont writes in The Symbolic Quest that \u201cThe seeming inevitability of conflict among the archetypal "powers" can cause us to experience life as a hopeless, senseless impasse. But the conflict can also be discovered to be the expression of a symbolic pattern still to be intuited.\u201d There\'s a potential that we can reach into the intuitions that come out of difficult experience and grow understanding of group dynamics to create pathways that do not end in violence, abuse and waste. The sad cases of suicide, sabotage, ill health and conflict that we know of in digital tech, startup and hacker cultures show that forging wisdom in this area is important.', u'entity_id': 553, u'annotation_id': 10759, u'tag_id': 1638, u'entity_type': u'post'}, {u'quote': u"HI\xa0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!", u'entity_id': 30608, u'annotation_id': 10758, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 19200, u'annotation_id': 10757, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'thought of Buoy as a suicide prevention tool.', u'entity_id': 19153, u'annotation_id': 10756, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'e dealing with suicidal feelings or a variety of other complicated mental health issues".', u'entity_id': 19249, u'annotation_id': 10755, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.', u'entity_id': 15411, u'annotation_id': 10752, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'On the other hand, suicide prevention is more suited to community-driven solution than treating mental distress. Why? Because it\'s about someone being there at the right time, pulling the suicidal person away from the brink. This presents interestingly specific challenges.\xa0In this case we might lose some focus if we move over to "mental distress".', u'entity_id': 10741, u'annotation_id': 10751, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'here is probably nothing to be gained by restricting to hackers the suicide prevention story (we are looking into it as part of a different piece of work we are doing in Galway: apparently, suicide is endemic in the West of Ireland). If we just look into suicide prevention, we can still fetch all of the stories coming from the hacker community.', u'entity_id': 10741, u'annotation_id': 10750, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'Prevention of Suicide in the hacker community\n \n\nThis target is a bit too tight on hackers and becomes then necessary define what is a hacker and we think we could get stuck in this conversation (ie. why only hackers and \xa0not makers? what are really hackers?)\xa0.\nWhy don\u2019t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?', u'entity_id': 6774, u'annotation_id': 10749, u'tag_id': 1638, u'entity_type': u'comment'}, {u'quote': u'Prevention of Suicide in the hacker community', u'entity_id': 5479, u'annotation_id': 10748, u'tag_id': 1638, u'entity_type': u'post'}, {u'quote': u'There\u2019s also the fragility of the supply chains. Only major producers in the West, which means that supply is easily disrupted in less developed or accessible regions. We need to rely less on shipping insulin around and maintaining eg. a cold chain. This is a major barrier to getting insulin out where it needs to be. In short, we need to decentralise production.', u'entity_id': 38856, u'annotation_id': 11864, u'tag_id': 1940, u'entity_type': u'post'}, {u'quote': u"To organize webinars\xa0women can follow from home, or work,(\xa0as you know usually\xa0bullies isolated them from the world and friends) to obtain information, entrusted to others, sometimes it's a shame to talk with a close \xa0people and somewhat easier to turn to strangers...", u'entity_id': 16621, u'annotation_id': 10766, u'tag_id': 1639, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 657, u'annotation_id': 10765, u'tag_id': 1639, u'entity_type': u'post'}, {u'quote': u'A key takeaway for me personally is this: in a lot of cases what breaks how we think about mental illness is the belief\xa0that it needs to be fixed, that patients\xa0need to go back to some initial state of wellbeing;\xa0families, through proximity and attachment,\xa0are\xa0most prone to exemplify this in the daily lives of someone recovering after treatment -\xa0through a way of expressing emotions like 1) criticism 2) hostility 3) emotional overinvolvement. The mechanisms seem complex (can be subtleties, or\xa0just body language..), but it turns out that\xa0all 3 point to how difficult it is for family to accept and empathize,\xa0and only load too much pressure on the person in question.\xa0Strangers, on the other hand, do not really care THAT much and can be better healers because they "don\'t see you as a bundle of problems that need to be fixed".', u'entity_id': 13011, u'annotation_id': 10764, u'tag_id': 1639, u'entity_type': u'comment'}, {u'quote': u'O: 1 I would also talk to someone i know very little or not at all', u'entity_id': 5658, u'annotation_id': 10763, u'tag_id': 1639, u'entity_type': u'post'}, {u'quote': u'A number of organisations sprang up', u'entity_id': 39328, u'annotation_id': 11620, u'tag_id': 1640, u'entity_type': u'post'}, {u'quote': u'To organize support groups in the villages because \xa0as well as smaller cities, seminars, give practical advice, different topics,\xa0famous and successful people can tell their stories of how they achieved success, to have overcome its crisis....', u'entity_id': 16621, u'annotation_id': 10768, u'tag_id': 1640, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10767, u'tag_id': 1640, u'entity_type': u'post'}, {u'quote': u'Our focus is on\xa0support rather than "fixes". If you are looking for a more solution-oriented community, check out/r/getting_over_it/\xa0or\xa0/r/GetMotivated.\xa0or', u'entity_id': 9633, u'annotation_id': 10775, u'tag_id': 1643, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 751, u'annotation_id': 10772, u'tag_id': 1641, u'entity_type': u'post'}, {u'quote': u'We also believe that the act of mutual support is amongst the most therapeutic of acts, transforming relationships from ones of being a recipient and subject of care, to a space of\xa0autonomy, collective development, peer provision and mutual reliance that involves people in generating their own solutions.', u'entity_id': 757, u'annotation_id': 10771, u'tag_id': 1641, u'entity_type': u'post'}, {u'quote': u'It was made almost mandatory by the dean and resident advisers to participate in these groups. There was resistance at first by many and that kind of tapered off. Being a psychology major we helped develop these groups in collaboration with various student groups. It was quite astonishing to see the resistance then you see the connection that was made over time and the participants, well some of them anyway changed their direction and went into this field so maybe it was a chance to tap into their real path they were destined to follow. Through difficulties, we usually discover what we were meant to do. Each one teach one to reach one! Networks can indeed support and enhance the quality of life and provide a buffer against adverse life events and difficul', u'entity_id': 26061, u'annotation_id': 10770, u'tag_id': 1641, u'entity_type': u'comment'}, {u'quote': u"Lotfi: Nous \xe9tions trois entit\xe9s, je suis avec Selvi, nous avons eu une maison de repos, Xander travaille avec des enfants autiste, Alkasem, il esp\xe8re qu'il pourrait faire son m\xe9tier de m\xe9decin. On a parl\xe9 d'interg\xe9n\xe9rationnel, comment cr\xe9er des mini soci\xe9t\xe9 ou il y a des \xe9change. Au del\xe0 d'un certain \xe2ge: il y a pas de support. Alkasem a fait la parall\xe8le de comment le syst\xe8me de soin ce passe en moyen orient, une culture musulman de l'entraide. On impose de donner de l'argent au pauvre. Tout le monde vie ici dans sa bulle, il n\u2019y a pas de transversalit\xe9.", u'entity_id': 541, u'annotation_id': 10769, u'tag_id': 1641, u'entity_type': u'post'}, {u'quote': u"There is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our 'acorn', that we are born with a 'mission', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment/youth/parents... We should instead in therapy look more for 'the inborn authenticity, the inborn self'.", u'entity_id': 31148, u'annotation_id': 10774, u'tag_id': 1642, u'entity_type': u'comment'}, {u'quote': u'if this is so generalized, what support systems are out there for artists then?', u'entity_id': 30885, u'annotation_id': 10773, u'tag_id': 1642, u'entity_type': u'comment'}, {u'quote': u'The second project started in the Himalayas in Nepal but now has spread to six other countries in developing world. Himalayan Cataract Project is a brain child of Dr. Sanduk Ruit, a Nepalese eye surgeon, who invented a cheap and simple method to operate cataract and restore vision. The organization was later on started by Dr. Tabin, American eye specialist who fell in love with the project while on holidays in Himalaya. The duo is now leading the world\u2019s biggest project aiming at removing cataract for the poorest:\xa0through\xa0a ten minute microsurgery with\xa0articial lens\xa0implantation.\nThe project is extraordinary and has been documented in media all over the world. My favorite aspects of it are:\n\n\nThe lenses used by the doctor are produced in Tilganga in Kathmandu, Nepal, bringing their costs down from 100 dollars to around 3.5 per piece.\n \n\nThe surgery lasts around five minutes per eye, and can be delivered almost anywhere. I saw a documentary about Dr Ruit and his visits in the Himalayan villages, where he opened pop-up clinics and treated dozens of people a day; for most of these people ability to see is crucial not only to their own well-being, but also the condition of the family, which needs their working hands;\n \n\nHis lenses have 98% success rate, same as sophisticated and expensive surgeries delivered in USA (using equipment for 1 million dollars)\n \n\nThe doctor himself has cured around 120.000 people\n \n\nBy funding Tilganga Institute of Ophthalmology, Dr. Ruit created a whole system that provides patients with complete eye care - and the fees that better-off patients pay for their services finance the free surgeries for the others;\n \n\nIn Tilganga they also manufacture eye prosthetic which has similar quality with those produced in the West, but costs 3 dollars, instead of 150.\n \n\nThis simple idea turned out incredibly effective and is tested now in other countries.\nhttp://www.cureblindness.org/eye-on-the-world/press\nhttp://www.tilganga.org/', u'entity_id': 709, u'annotation_id': 10776, u'tag_id': 1644, u'entity_type': u'post'}, {u'quote': u'I would love @Mashrekur_Rahman to take a look at this. he is a scientist and acrivist dealing with climate change\xa0effects in Bangladesh, one of the hardest hit areas.\n\nI do not have a ready tip, but i am aure it is timr for us to prepare a climate survival kit for many countries in the global south. do you think it would make sense to spend some months next year building a dedicated section on the platform to address this issue? maybe we could travel somewhere to research, connect with locals and create a database like this collectively?\xa0\n\n@Matthias, @Alberto let me know what you think. i am back to europe next week and back to work as well. \xa0by work i mean edgeryders', u'entity_id': 14873, u'annotation_id': 13069, u'tag_id': 1646, u'entity_type': u'comment'}, {u'quote': u'Of course with some different focus groups and cases,\xa0but "The Citizen" does not exist. So what I\'d think is crucial is the presentation format and delivery method.\n\nFor example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. "Where there is no Doctor", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term.\n\nMost documents I know are written in a linear fashion, either for "the general populace" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag.\n\nInterestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better.\n\nI think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios):\n\n\nCopies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer.\nRecording of spoken/played material via phone, perhaps eventually put into writing.\nPencil/coal stick/copy machine copies of simple illustrations/heuristics/nmemonics/ not more than a few lines in most cases.\n\n\nMy suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific "type" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as "album art" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement "xyz"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.\n\nAudio has the advantages that you do not need to drop everything you\'re doing, you can do it while walking, and you can do it in the dark.\n\nIf you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required.\n\nMy schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course.\n\nI wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the "professional care & aid circus" can dock into, and many of the respective group\'s fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.\n\nThe implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you\'ll probably be among them.\n\nThe simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented.\n\nMake a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half "upwards" and half "downwards".\n\n*Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.', u'entity_id': 13504, u'annotation_id': 13068, u'tag_id': 1646, u'entity_type': u'comment'}, {u'quote': u'Dear\xa0Michel, nice to see your article, its very interesting, here some preventive measures are given below for safe exit and i am sure you will definitely agree with that ....\nDuring a Cyclone:\nIf a cyclone is approaching and an official evacuation order has not been issued, you may decide to shelter in your home until the cyclone has passed through.\xa0\n\nIf you decide to shelter at home:\n\nTurn off all electricity, gas and water and unplug all appliances\nKeep your Emergency Kit close at hand\nBring your family into the strongest part of the house\nKeep listening to the radio for cyclone updates and remain indoors until advised\nIf the building begins to break up, immediately seek shelter under a strong table or bench or under\xa0\n a heavy mattress\nBEWARE THE CALM EYE OF THE CYCLONE.\xa0\n Some people venture outdoors during the eye of the cyclone, mistakenly believing that the cyclone has passed. Stay inside until you have received official advice that it is safe to go outside.\n\n\nIf you must evacuate:\nIf an official evacuation order is issued then you and your family must leave your home immediately and seek shelter with friends or family who are further inland or on higher ground.\n\nTurn off all electricity, gas and water, unplug all appliances and lock your doors\nEnsure all family members are wearing strong shoes and suitable clothing\nTake your Emergency Kit and your Evacuation Kit and commence your Evacuation Plan\nIf you are visiting or holidaying in Queensland and do not have family or friends to shelter with, contact your accommodation manager immediately to identify options for evacuation.\n\n\nAfter a Cyclone:\nThe time immediately after a cyclone is often just as dangerous as the initial event itself.\xa0\nMany injuries and deaths have occurred as a result of people failing to take proper precautions while exploring collapsed buildings and sightseeing through devastated streets.\xa0\nOnce you have been advised that the cyclone has passed you must adhere to the following:\n\nListen to your radio and remain indoors until advised\nIf you are told to return to your home, do so using the recommended routes only\nDo not go sightseeing\nCheck on your neighbours if necessary\nDo not use electrical appliances which have been wet until they are checked for safety\nBoil or purify your water until supplies are declared safe\nStay away from damaged powerlines, fallen trees and flood water', u'entity_id': 27823, u'annotation_id': 10786, u'tag_id': 1646, u'entity_type': u'comment'}, {u'quote': u"I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\xa0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references", u'entity_id': 21205, u'annotation_id': 10785, u'tag_id': 1646, u'entity_type': u'comment'}, {u'quote': u'We want to start a foundation, which will have a wide network of researchers, specialized food coaches, sport coaches and doctors to gather information and advice, on how to compose healthy menu\u2019s for cancer patients and provide information on healthy ways of exercising during your illness. Not only in general, but also customized, for each individual. Our plan is to set up an overview listing healthy products to eat during your treatment, but also listing products, that are particularly unhealthy.\nNext to that we want build up a network to reach out to people who cannot cook or are not able to exercise (or just walk) on their own. Look around to your own environment. If you were aware that there is a single man/woman, who lives a couple of streets away, which is not able to cook because he/she is too ill, would you not cook (needless to say that this needs to be in line with the advice of the foundation) for that person? This is called community care.Focusing on the hospital food will be the second target (long-term). Once we start informing patients and start working with researchers, food coaches, sport coaches and doctors, we will eventually be able to slowly change the hospital food.', u'entity_id': 711, u'annotation_id': 10784, u'tag_id': 1646, u'entity_type': u'post'}, {u'quote': u'In addition, it\u2019s important to develop a survival handbook with the aim to provide \u201chow-to\u201d guidance based on practical experience in combination with academic knowledge. And the challenge is to respond to all these arisen questions. Or add new.', u'entity_id': 550, u'annotation_id': 10780, u'tag_id': 1646, u'entity_type': u'post'}, {u'quote': u'This guide is one of the reasons I decided to establish the assosiation "Cosmus diy" (the bureaucracy part). Most of the people here have experience at Idomeni and still have at the camps. But I think it must be more wide. Not only about the refugees\' wave or about a specific place/country. Maybe a few things can be the same but every place should have a diffirent guide. And then we can map and add people and skills or knowlenge.I also have an idea about the clothing problem and how we can do "smart balls" with clothes anywhere This is more complicated and I think it needs a video.', u'entity_id': 13497, u'annotation_id': 10782, u'tag_id': 1646, u'entity_type': u'comment'}, {u'quote': u"This kind of input really is helpful and i can already see a 'Citizens guide to supporting people in an emergency' style document that contains these kinds of ideas and responces.", u'entity_id': 13477, u'annotation_id': 10781, u'tag_id': 1646, u'entity_type': u'comment'}, {u'quote': u'Therefore\xa0this\xa0proposal of creating a\xa0living document to collect knowledge, references and safe practice', u'entity_id': 5913, u'annotation_id': 10783, u'tag_id': 1646, u'entity_type': u'post'}, {u'quote': u'I would love @Mashrekur_Rahman to take a look at this. he is a scientist and acrivist dealing with climate change\xa0effects in Bangladesh, one of the hardest hit areas.\n\nI do not have a ready tip, but i am aure it is timr for us to prepare a climate survival kit for many countries in the global south. do you think it would make sense to spend some months next year building a dedicated section on the platform to address this issue? maybe we could travel somewhere to research, connect with locals and create a database like this collectively?\xa0\n\n@Matthias, @Alberto let me know what you think. i am back to europe next week and back to work as well. \xa0by work i mean edgeryders', u'entity_id': 14873, u'annotation_id': 13070, u'tag_id': 2217, u'entity_type': u'comment'}, {u'quote': u'Dear\xa0Michel, nice to see your article, its very interesting, here some preventive measures are given below for safe exit and i am sure you will definitely agree with that ....\nDuring a Cyclone:\nIf a cyclone is approaching and an official evacuation order has not been issued, you may decide to shelter in your home until the cyclone has passed through.\xa0\n\nIf you decide to shelter at home:\n\nTurn off all electricity, gas and water and unplug all appliances\nKeep your Emergency Kit close at hand\nBring your family into the strongest part of the house\nKeep listening to the radio for cyclone updates and remain indoors until advised\nIf the building begins to break up, immediately seek shelter under a strong table or bench or under\xa0\n a heavy mattress\nBEWARE THE CALM EYE OF THE CYCLONE.\xa0\n Some people venture outdoors during the eye of the cyclone, mistakenly believing that the cyclone has passed. Stay inside until you have received official advice that it is safe to go outside.\n\n\nIf you must evacuate:\nIf an official evacuation order is issued then you and your family must leave your home immediately and seek shelter with friends or family who are further inland or on higher ground.\n\nTurn off all electricity, gas and water, unplug all appliances and lock your doors\nEnsure all family members are wearing strong shoes and suitable clothing\nTake your Emergency Kit and your Evacuation Kit and commence your Evacuation Plan\nIf you are visiting or holidaying in Queensland and do not have family or friends to shelter with, contact your accommodation manager immediately to identify options for evacuation.\n\n\nAfter a Cyclone:\nThe time immediately after a cyclone is often just as dangerous as the initial event itself.\xa0\nMany injuries and deaths have occurred as a result of people failing to take proper precautions while exploring collapsed buildings and sightseeing through devastated streets.\xa0\nOnce you have been advised that the cyclone has passed you must adhere to the following:\n\nListen to your radio and remain indoors until advised\nIf you are told to return to your home, do so using the recommended routes only\nDo not go sightseeing\nCheck on your neighbours if necessary\nDo not use electrical appliances which have been wet until they are checked for safety\nBoil or purify your water until supplies are declared safe\nStay away from damaged powerlines, fallen trees and flood water', u'entity_id': 27823, u'annotation_id': 10787, u'tag_id': 2217, u'entity_type': u'comment'}, {u'quote': u'Dear @iffat_e_faria, its very impressive and motivational efforts. All around the world, people are gearing up for earth day. Started in 1970, this designated day of April 22 has become an annual reminder of our responsibility to be good stewards of the Earth. You did excellent and contributed into a healthier Earth in multiple ways with plant a garden, which committed to reduce, reuse and recycle.\n\nGood and keep it up...... All the best for your future endeavors \n\nDr. Saeed Ahmad Qaisrani', u'entity_id': 26066, u'annotation_id': 13077, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u"Hi @iffat_e_faria. More green, more forests are beneficial to our health in so many ways. Taking joy of caring of them as @Noemi points out, taking a walk in the forest, cleaner air, better soils, more stable climates, more biodiversity, ... The list goes on.\n\nIn Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader.\n\nFive seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here's the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here's loading them in a cargo bike:", u'entity_id': 24340, u'annotation_id': 13076, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u"we are beginning to develop more sustainable ways of consumption, in a gradual way that everybody can understand, also thanks to the fact that we have a child's birthday party nearly every day in our garden! And a child's birthday party is a much better place to deal with these issues, than a smoke-filled meeting hall...", u'entity_id': 21382, u'annotation_id': 13075, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'Great article @noemi, Nieklitz sounds amazing. So many people are now edging towards a more earth-savy lifestyle.  @emsone me , would be great if you or someone from Nieklitz could make it to the festival, we could learn loads from you!\n              \n  \n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 38041, u'annotation_id': 11715, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'It is my understanding that the group works for Earth sustainability, with a mission of co-working in nature (the lack of working Internet was temporary). They partially use geotermal energy (underground pipes for heating); research water efficient biogas stoves (to work through methanization); plan an upcoming earthship; organise renovation and building camps on the land. All these build up a sustainable space, with awareness that \u201ceverything we produce we need to sell\u201d, as someone said to me. All would then call for how-to innovation workshops, for others to learn how to do it. They also host organisations/ events to make temporary use of the space, and encourage deeper exchange: permaculture meetings would teach everyone new practices, while experimenting on the Nieklitz land. Like most skilled communities I have seen, the boundaries between those who host and those who cross their path are purposefully blurred.', u'entity_id': 36387, u'annotation_id': 11701, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'Economic model. We have no capital, no investors, no shares. We use other channels like foundation money, but this is not sustainable. How do you sustain a project?', u'entity_id': 6459, u'annotation_id': 10829, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'And shifting to the right in practice for us meant\xa0developing sustainable financial models.\nLargely in two ways: commodifying what came out of our own chaos and getting paid to invent new things for other people (creating some chaos in their world).', u'entity_id': 19057, u'annotation_id': 10828, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'Dear @WinniePoncelet, I feel really glad to know that there is someone at the other part of the world , thinking the exact same process to make a positive change in the environment. I really felt good about the whole story from the beginning to collect them from a play and to saving them and nurturing. The efforts, time and energy you have given behind this , is truly amazing. I hope there will be more to this story, 4 other loving people like you will take those beautiful trees away and give them the proper care that they deserves. I hope to see more tiny apple fruits on the branches , and let others knoiw tbat they have life too, the strong will of surviving and more.\nThank you for comnmenting here, means a lot.', u'entity_id': 25251, u'annotation_id': 10827, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u"Hello dear @Noemi mam. Thank you foe your words, Yes we met once and my project is running well now as it is summer in my country, everyone is tired of this increasing heat , poeople are showing interest in planting trees for their own sake. We are offering a new option to the landlords , if they let us use their rooftops, they'll get paid in return. Few people joined already and more are joining. I am hopeful because I think deep inside everyone loves their planet and the idea of going green has a thousands og positive side. I will be posting few pictures of our improvement soon.", u'entity_id': 18773, u'annotation_id': 10826, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'So, I and my wife Lisa started "Makers" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that\'s completely self-sustaining. Our logic is that, in these increasingly reactionary times, public money will not be available to help localities, so we\'ll need to make sure that what we do works on a completely commercial basis. This means that job number one is to SELL! Every other objective can only be realised after we understand exactly how to relocalise manufacture SUSTAINABLY.', u'entity_id': 14151, u'annotation_id': 10825, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u"On September 8th 2016, I have initiated an online campaign called \xa0#PlantAtreeChallengeBD\u201d The reason behind this was very simple. A country like Bangladesh, which is constantly facing threats of so many kinds of natural disaster, is being increasingly ignorant about its natural conservation. This country has only 17% of forests within. This by the way is getting narrower. Even the largest mangrove forest Sundarbans, which is an internationally recognized world heritage site, is also facing terrible manmade disasters and constant environmental pollutions. It has reached such a zenith, that the global-ecosystem is threatened with the loss of a majority of all species, by the end of this century. Everyone knows, but some chose to ignore it, some choose to remain silent about it. But I thought the simplest solution to address this problem is just plant more trees. It\u2019s a simple yet most productive solution to involve the youth, who first of all should be concerned about it; secondly should take initiatives to mitigate this problem. The idea to run an online campaign came to me due to the massive participation of youth in social media. My goals were very simple, engaging the youth to talk about the problem or at least make them realize how important it is to address the issue. Secondly, mobilize my community to take an initiative in real space so that they feel the necessity to do something about this particular problem.\nAlong with few friends, I started inviting people over facebook to join the event. All they had to do is plant 5 trees and nominate 5 other friends on facebook to replicate the same. This way it will work like a chain reaction and we will be able to see a huge number of trees getting planted in a short period of time. The campaign is still going on and more people are joining. I know it has not gone viral and the number is not that high. Because in reality if you want to mobilize your community for a good cause, you have to ensure some motivations for them. Social norms are something that people tend to follow. Online campaign is there to help create a buzz, to create an objective. Which means if someone can bring out the movement from online space to offline, it moves faster and better. This is exactly why I have planned to run this campaign both online and offline.\nPrimarily I even offered few things extra to carry on with the campaign. Since I am an online based entrepreneur and I have a client tale which is 3 years old, we kind of have a personal trust relationship with each \xa0other. So I personally offered my clients, I'll plant trees on behalf of them for every sell worth $10.\nTo bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor\u2019s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO\u2019s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on\xa0increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very first carbon negative", u'entity_id': 848, u'annotation_id': 10824, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 775, u'annotation_id': 10823, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'Je pense ne pas \xeatre le seul, en disant qu\u2019une fois tous les x-temps dans le milieu socioculturel, \xe9v\xe9nementiel ou de l\u2019entrepreneuriat social tu te demandes : pourquoi suis-je en train de mettre toute mon \xe9nergie dans un projet collaboratif quand personnes ne collabore vraiment. Est-ce que je n\u2019arr\xeate pas tout pour faire mon truc dans mon coin, sans les autres, car la seule personne sur qui je peux conter c\u2019est moi ? Une logique peu constructive mais tellement facile qu\u2019elle nous \xe9loigne du vrai probl\xe8me : pourquoi n\u2019apprenons nous pas la culture de la collaboration \xe0 partir du plus jeune \xe2ge ?\nNous l\u2019entendons partout : nous sommes dans une p\xe9riode transitionnelle, qu\u2019elle soit positive (\xe9mergence d\u2019\xe9conomie collaborative, renouveau des mod\xe8les low-tech, cr\xe9ation d\u2019outils num\xe9riques de gestion d\xe9centralis\xe9e, \u2026) ou n\xe9gative (\xe9mergence d\u2019organisations extr\xe9mistes, renouveau des partis populiste-fasciste, cr\xe9ation de tactiques num\xe9rique de propagande,\u2026) nous voyons que l\u2019importance de se retrouver sous un arbre de valeur est d\u2019une grande importance en ce moment. Les outils sont l\xe9gions : Trello pour les fanas de post-it digital en mode collaboration, Slack comme forum organique et le saint graal de la collaboration d\xe9centralis\xe9s : Github. Tous ont une arm\xe9e de fans, mais tous ont le m\xeame probl\xe8me : si il n\u2019y a pas une base de valeurs collaboratives sur quoi travailler, ces outils restent un beau d\xe9cor. C\u2019est comme donner des outils de permaculture \xe0 un fermier industriel : si il ne voit pas que les valeurs partag\xe9es sont un atout majeur, il restera avec ces m\xe9thodes classiques.\nLa Culture de la collaboration\nComme n\u2019importe quelle autre id\xe9e soci\xe9tale, elle devient omnipr\xe9sente quand elle est vue comme une partie de notre \u2018culture\u2019. Mais aucune id\xe9e n\u2019a fait partie de la soci\xe9t\xe9 sans avoir \xe9t\xe9 confectionn\xe9e d\u2019une mani\xe8re ou d\u2019autre. Un premier pas pour aller vers cette \u2018Culture de la collaboration\u2019 est de voir l\u2019information comme un bateau qui doit arriver \xe0 bon port. Ca ne sert \xe0 rien de tenir l\u2019information pour soi, partage la avec la bonne personne, passe les bonnes id\xe9es comme si c\u2019\xe9tait un plateau de charcuterie \xe0 une soir\xe9e raclette. Chaque personne prendra bien soin de choisir l\u2019info qui lui convient le plus.\nCar une information qui v\xe9hicule librement aide \xe0 am\xe9liorer le deuxi\xe8me point : Ne perdez plus d\u2019\xe9nergie \xe0 r\xe9inventer la roue mais essayer de contribuer avec des projets d\xe9j\xe0 existant. C\u2019est en ajoutant de nouvelles grilles de lectures, en rentrant dans un projet avec un autre angle ou d\u2019autres informations qu\u2019on apprend beaucoup. Rester dans son enclos n\u2019aide personne, m\xeame si le r\xe9flexe protectionniste se comprend : vous voulez contr\xf4ler votre id\xe9e contre un opportunisme qui pourrait se cacher derri\xe8re chaque recoin. Mais si nous acceptions, comme c\u2019est d\xe9j\xe0 le cas dans les recherches universitaires, d\u2019avoir un syst\xe8me de mentions g\xe9n\xe9rales pour la collaboration de projet, nous devrions avoir moins peur de cet opportunisme.\nRecr\xe9er la membrane de confiance\nCar voil\xe0, le grand probl\xe8me qui se cache derri\xe8re cette peur inn\xe9cessaire de la protection d\u2019information: on \xe0 perdu notre membrane de confiance entre humain. Tout dans notre entourage nous dit de se m\xe9fier de l\u2019autre. Car comme disait ce bon vieux Sartre: L\u2019enfer c\u2019est les autres. Mais si nous relisons la th\xe9orie du Darwinisme social nous voyons que c\u2019est notre aptitude \xe0 collaborer qui \xe0 fait que nous avons surv\xe9cu aux animaux dix fois plus grand que nous, aux p\xe9riodes glaciaire et aux famines.\nPour recr\xe9er cette membrane de confiance nous ne devons pas croire dans \u2018les grand mouvements\u2019, car comme les grandes histoires, elles sont mortes avant d\u2019entrer dans la p\xe9riode post Moderne. Soyons comme Enspiral, un r\xe9seaux de petit groupes. Cr\xe9ons des petits faits, pour r\xe9apprendre \xe0 se faire confiance. On ne doit pas d\xe9crocher la lune, mais simplement savoir aider son voisin. La petite pierre que j\u2019apporte \xe0 cet \xe9difice est de prendre le caf\xe9 chaque matin avec quelqu\u2019un d\u2019autre, d\u2019\xe9couter son histoire et de voir ou je peut faire du lien.\nL\u2019ego doit donner place \xe0 l\u2019id\xe9e\nDans notre soci\xe9t\xe9 contemporaine nous donnons encore et toujours trop de place \xe0 l\u2019ego, qui l\u2019emporte souvent en discussion de l\u2019id\xe9e. Mais voil\xe0 si nous voulons vraiment cr\xe9er une culture de la collaboration nous devons mettre en place des freins \xe0 l\u2019ego. De pouvoir \xeatre fier de l\u2019ajout qu\u2019on a donn\xe9 \xe0 une id\xe9e. Ne plus voir la collaboration comme une simple \xe9conomie du (mauvais) couple, ou chacun donne et qu\u2019on fait les comptes quand \xe7a ne va pas, mais se focaliser sur l\u2019id\xe9e et les valeurs v\xe9hicul\xe9es en commun.\nPour \xe7a la collaboration doit se faire par les faits et non par les mots. Trop souvent la r\xe9union pr\xe9c\xe8de la participation, mais c\u2019est en faisant qu\u2019on apprend plus de la personne, que chaque personne est mise \xe0 nue. Une expression invent\xe9e par Nicolas de OpenFab trouve ici parfait \xe9cho: nous devons cr\xe9er l\u2019atome de FAIRE.\nUn prochain pas pourrait \xeatre de redonner dans notre \xe9ducation collective une vraie place \xe0 la collaboration. Pas de travail- en groupe forc\xe9 qui mal organis\xe9 nous prouve que l\u2019enfer c\u2019est vraiment les autres, mais une culture de la collaboration ancr\xe9 dans le syst\xe8me d\u2019\xe9ducation g\xe9n\xe9ral.\nSi vous avez des ressources la-dessus je suis preneur.\nHoward Rheingold | Who Said Collaboration Wasn\u2019t Sustainable\nJason Louv |The Next Buddha Will Be a Collective\nDaniel Christian Wahl | Collaboration and empathy as evolutionary success stories\nEnspiral Stories | 5 Reasons to Build a Network of Small Groups, Rather than a Mass Movement of Individuals', u'entity_id': 33747, u'annotation_id': 10822, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'Sustainable Engineering and Application\n\n Application of sustainable energy production;\n High-Tech in ecological production processes.', u'entity_id': 765, u'annotation_id': 10821, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'Do you think the mobile version of the tiny home would be suited for a larger event (60+ people)? Nadia may have told you, we are looking into modular structures but also environmentally friendly, so that after the event when time comes to wrap up there is no waste.. Like Alberto, I am curious about the climate suited and other favourable or unfavourable conditi', u'entity_id': 14070, u'annotation_id': 10820, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u"Having met people working in sustainable housing and also at the policy level, there's two steps I found they follow: 1) moving away from cities to be able to run with greener technologies that dont otherwise get approved by authorities\xa0(by green tech\xa0I mean, for instance\xa0insulating with clay mixes, recycled pallettes, wool or cellulose..). 2) building more houses on larger pieces of land and adding an educational center near it to support community development.", u'entity_id': 12304, u'annotation_id': 10819, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'And Pavlos has an idea. Greece can become a hotspot of international dialogue on sustainability and resilience. As the country struggles with, as Pavlos has beautifully put it, "restoring the zombie economy", it innovates and experiments along the way. The social innovation and solidarity, however highly spontaneous and uncoordinated, are the backbone for the change. What would be necessary now is to organize those in collaboration with the right minds from all over the world in order to use the whole potential of this change and build a national economy that is regenerative and sustainable?\xa0\nEven though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what\'s happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.', u'entity_id': 704, u'annotation_id': 10818, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'Creating sustainable socio/economic regeneration.', u'entity_id': 716, u'annotation_id': 10817, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u"What can you make with old plastic bottles? An way to draw cool air into homes using plastic bottles, using raw materials and the \xa0creating a benefit to the community:\nhere's the story:\nHow Bangladeshi inventors are making eco-friendly air conditioners from plastic bottles\nWhat can you make with old plastic bottles? A vase? A flowerpot? \u2026 an air-conditioning unit? Believe it or not, you can. When inventor Ashis Paul came up with an innovative way to draw cool air into homes using plastic bottles, his whole company got on board to help teach people living in rural Bangledesh to do the same. Since February this year, they\u2019ve helped people to install these units-- which don\u2019t need electricity to function-- in more than 25,000 households in developing areas of the country.\n\u201cMost people live in tin huts\u2026 in the summer, it\u2019s like being in sauna in the Sahara\u201d", u'entity_id': 33744, u'annotation_id': 10816, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'I honestly think this is a very interesting and practical idea. The ones involved in this activity didn\u2019t only help those people be more comfortable with the weather conditions from there. You helped the environment too. (Now I\u2019m thinking about the long time that it takes for plastics to biodegrade \u2013 such a well-known problem.) You basically killed two birds with one stone. I think this is the kind of initiative we all need to solve the problems around us. So happy for this! Well done!\nAlso, are you planning to extend this project into other countries or regions? Do you have the resources? I\u2019m very curious.', u'entity_id': 33790, u'annotation_id': 10815, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 10812, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'A\xc1E originated as an arts group but has been looking at culture in the broader sense, integrating health and physical environment/ecological sustainability. A', u'entity_id': 14308, u'annotation_id': 10811, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 801, u'annotation_id': 10810, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u"Actually it's our future generations lives is on the line metaphorically and literally. Nature and man can't be separated.\nAs my thoughts, training for peasants for new method of rice planting unsteady of slash and burn. Biogas can replace the charcoal and wood used as \xa0combustion of 80% of Malagasy people. \xa0Education for all and ordinance and penalties can be applied for any means of illegal way. \xa0It's just a small sand into the gears to overcome or slow\xa0down this fast truck.", u'entity_id': 706, u'annotation_id': 10809, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'our network through an open call all over Greece and reclaim our existing collaborations and good synergies abroad.\nI am interested in self-sustainability and viable solutions with regards to how we live and thrive and hence I beleive that the future lies in the creation of new types of communities, ecovillages etc, and the promotion of practices like permaculture and the blue economy model of zero emissions that can create self-sufficient farmers and viable, circular economies that not only do not pollute, but actually create more resources instead of depleting them.\xa0 I am trying to encourage Greek people to be more involved in Community-Supported Agriculture (CSA) schemes, to share risks with their farmers during the cultivating season and create a new concept of human relationship within the community they interact with. Additionally, the enhancement of CSA would support small-scale farmers who lack access to the local market and cannot (should not) get involved in complex food chains.', u'entity_id': 750, u'annotation_id': 10808, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u"It's really needs to get top water, some people pay 1\u20ac for one gerican (20 liter) only on market day for it. Teaching sustainable technics is an issue, for me it's a key to overcome this situation.", u'entity_id': 27816, u'annotation_id': 10807, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u"It's really needs to get top water, some people pay 1\u20ac for one gerican (20 liter) only on market day for it. Teaching sustainable technics is an issue, for me it's a key to overcome this situation.", u'entity_id': 27816, u'annotation_id': 10806, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'And again: you mention sustainability, and well you should. Are your present activities sustainable? Or are they bleeding out money?', u'entity_id': 20474, u'annotation_id': 10805, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'Sustainability', u'entity_id': 8137, u'annotation_id': 10804, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'How do you create sustainability? \xa0Donation based/grant based/fee based?', u'entity_id': 521, u'annotation_id': 10803, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'These are exactly the questions we are dealing with right now. We started off with honeycomb cardboard as you see on the pictures because its very easy to work with even if you dont have proffessional tools. The Problem though: it\xb4s not long lasting. The stuff we build with the the refugees about a month ago is already loosing its shape.', u'entity_id': 21499, u'annotation_id': 10802, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 9599, u'annotation_id': 10801, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'True to that. I suspect from how\xa0you\xa0approach this that the ecofriendly solutions are just smokescreen?', u'entity_id': 7867, u'annotation_id': 10814, u'tag_id': 2315, u'entity_type': u'comment'}, {u'quote': u'Excuseme the fowl language, but it\u2019s appropriate here.\xa0\nWe all know (or will) the insane cost of them. We spend lots of money on them on the household and institutional budgets. Several times a day we throw away these 30 cents items, often without needing to. Every human will or have used them for years. For multinational corporations they are the sweet smell of money, for us\u2026well it depends. Surely a disaster for\xa0the environment.', u'entity_id': 722, u'annotation_id': 10813, u'tag_id': 2315, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 20113, u'annotation_id': 10833, u'tag_id': 1650, u'entity_type': u'comment'}, {u'quote': u'But what do you mean by "skilled and well placed partners who are willing and able to act as brokers within the system to get things done"? Do you have any example in mind?', u'entity_id': 21856, u'annotation_id': 10832, u'tag_id': 1650, u'entity_type': u'comment'}, {u'quote': u'Alkasem: i have question to all of you: where are the families of the homeless people? I never saw anyone homeless in Syria, or living on a mattress. How did it happen? Some of the participants responded later on:\xa0\n\nthe core family concept has been broken down - after uni and growing up you have to carry yourself; so there is no glue which keeps family together\n\n\nin North Africa systems are weak -so there has always been a cultural support; whereas in the West the system is supposed to take care of everything\n\n\nHere (in the West) you are free, but alone!\n\n\n"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care (twitter link)', u'entity_id': 541, u'annotation_id': 10835, u'tag_id': 1651, u'entity_type': u'post'}, {u'quote': u'"Free, but alone." vs. "Belonging,\xa0but coerced" Comparing systems-based\xa0 vs. family-based cultures of care\xa0(twitter link)', u'entity_id': 790, u'annotation_id': 10834, u'tag_id': 1651, u'entity_type': u'post'}, {u'quote': u'This is ust my own personal \xa0take, mind you. But me, I am too much of an economist not to see the efficiency gains of involving everyone, being super-flexible as to the form in which different people contribute. The Reef has a calming, burnout-preventing\xa0effect on us simply because being in one live-work place allows us to support each other in more ways. If I am exhausted, or pissed off, I can share whatever I do to flush the ad stuff out of my system: if I feel like cooking a meal I can offer you to cook for you too (or help me, if you feel like cooking too). If I feel lik going for \xa0run or a long walk I can invite you. It costs exactly nothing. But occasionally it will be just what you need: taking a break, regenerating a bit. We have already noticed how we are working fewer hours, and cutting out exactly the worktime where we are most stressed or tired \u2013 the worktime that does not produce anything. Compare the economics of this with those of bringing in a top-heavy professional system of counseling and treatment.', u'entity_id': 24900, u'annotation_id': 10836, u'tag_id': 1652, u'entity_type': u'comment'}, {u'quote': u'When I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch "We Live in Public"? I did many years ago and it has definitely shaped how I feel about social media.', u'entity_id': 8509, u'annotation_id': 10840, u'tag_id': 1654, u'entity_type': u'comment'}, {u'quote': u'I learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.', u'entity_id': 548, u'annotation_id': 10839, u'tag_id': 1654, u'entity_type': u'post'}, {u'quote': u'In my experience it these circles work very well when the group shares a common willingness to receive, listen, and is open to go into deep experiences. Also what works well is to set a clear invitation and some simple guidelines, such as the ones I described. They help the group process and give a certain structure to build up momentum.\xa0My experiences have been diverse. I\'ve experienced beautiful gatherings where love, depth and understanding were shared among all participants. Sometimes when the group was mixed deeply sharing also lead to some confusion as these depths were not familiar to everyone and not everyone seemed to grasp the depth of the experience of someone else. Although I think it didn\'t harm or shock anyone too much, I do think it may have lead to some confusion. For instance, I once went very deep receiving the talking stick and staying silent for a few minutes, all attention on me, I didn\'t want to "just say something" so I stayed present with my inner dynamics (and doubts) in front of everyone. Finally, I said something that felt true to me. So I remained connected to my inner truth. The woman who was sitting next to me didn\'t know how quick she had to say something when I gave her the talking stick. Ever since our contact between me and the woman have been somewhat weird. Coming to think of it, I should have probably talked to her sometime and exchange perspectives lightly....  (oops).\xa0\n\nThis particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I\'d say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.\xa0\n\nI believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what\'s alive in you at the moment. This worked pretty well.\xa0\n\nI also initiated a circle once during a workshop where people didn\'t really know each other and there wasn\'t a real theme or topic. In that setting it didn\'t feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there\'s always (some) interest), \xa0there wasn\'t really a common intention or relevance to have this talk together. So I wouldn\'t organize a circle "out of the blue" again.\xa0\n\nMost of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it\'s no problem and good examples will follow.\xa0\n\nMost circles I went to lasted for about 1 to 2 hours. Although probably you know about retreats/ satsangs for instance with Bentinho Massaro that take about the whole day (with sessions of about 1,5 to 2 hours each). Have to say that during these days Bentinho (or some other "teacher) is the one who does most of the talking. Yet, he knows how to bring a group into depth. So, even though it\'s a different form, there\'s also huge transformation happening during these meetings.\xa0\n\n@Nadia about organizing this at The Reef. I would say a circle is very appropriate and effective if there is a theme or topic that has great interest. When this is the case, we can do it. You could also guide it yourself if you feel excited.\xa0\n\nAnd is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.\xa0\n\nSo let me summarize my experiences:\xa0\xa0\n\n\nSharing from personal experiences - yet not getting caught up into the story. The aim is to gain clarity to let go of stories and have space te create the new.\xa0\nCircles work well around certain (loaded) theme\'s and communities who work/ life together with a clear invitation.\xa0\nListening from the heart, listening from beyond the personal perspective (not taking anything personal)\nEverything that pops up from a genuine sharing is welcome, even if it\'s off topic. What\'s alive here and now is relevant, provided it serves the conversation & transformation of the whole (including the individual).', u'entity_id': 24534, u'annotation_id': 13079, u'tag_id': 1656, u'entity_type': u'comment'}, {u'quote': u'listening and asking questions to explore the perspective', u'entity_id': 6401, u'annotation_id': 13078, u'tag_id': 1656, u'entity_type': u'post'}, {u'quote': u"In terms of hardware I am currently sitting on 10 cheapo mp3 players and some mp3 voice recorders. The idea is to put some audio content on a small memory card (perhaps also some visual content e.g. on playing card size). This costs 2-3 $ and can hold days worth of structured audio content. The strucure of the content is important because I hope to turn the play+listener into a temporary agent (a little tolkeen's ring style). So you would have incentives there for the player (or several) to traverse the community networks in a mix of chance, human behavior, and programming, and hopefully end up in someones lap who may have been incredibly hard to find using other methods.", u'entity_id': 26057, u'annotation_id': 10843, u'tag_id': 1656, u'entity_type': u'comment'}, {u'quote': u'When I ask Ngala what networked technologies could do to help these efforts he replies that they could help facilitate expression: \u201cIn this work there are problems, most of them could be solved through sharing. When survivors are given opportunities to share their stories they heal fast. Networks would provide a good platform for people to share their experiences. Sharing could be done through writing or be spoken. Narrations could be recorded and later could be used to make short clips.\u201d I think of just how possible this is as it is poses a clear and actionable technological problem, but looking at Ngala I wonder whether he realises how key his presence is to the process and the quality of the interaction. What forges the profound shifts in people\u2019s experience is how their expression is received, listened to, validated and responded to. When speaking with Ngala, a man with vast generosity of soul and focused attention, you really do feel stronger. He beams at you and honours your presence in a way that is rare. In conversation with him you feel that your words matter, your life is respected and that miraculous healing is possible. Popular culture tends to talk about purging emotions, as if emotions are toxic material that needs ejecting from your system, but what Ngala\u2019s work shows is that the magic is in the courage to speak honestly and the grace of being heard: that\u2019s when emotions turn into understanding. The human catalysts at TICAH are so much a part of why these reconciliation attempts have been successful and any attempt to extend the work through technology needs to factor this in at the centre.', u'entity_id': 553, u'annotation_id': 10842, u'tag_id': 1656, u'entity_type': u'post'}, {u'quote': u'What helped me most in the end wasn\u2019t necessarily talking about anything in those situations. Discussing these things with a neutral person such as a therapist was a much better framework for me to sort out my thoughts without the added complications of emotional attachment. The greatest help for me was just someone being there and giving me a hug. Telling me that they know it sucks and just sharing a little bit of the suckiness in that moment.', u'entity_id': 677, u'annotation_id': 10838, u'tag_id': 1653, u'entity_type': u'post'}, {u'quote': u'we really need some clinical people or just some epathic persons. Often what people really need is just to talk.', u'entity_id': 16892, u'annotation_id': 10837, u'tag_id': 1653, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 10847, u'tag_id': 1658, u'entity_type': u'post'}, {u'quote': u'Therefore we decided to extend our Berlin based coding school for kids and use our experiences to create online e-learning platform to teach newcomers programming: from how to install browser to how to build your mobile app. All the learners can learn digital skills/programming no matter where they are, they get 24/7 support on the chat from mentors and other learners and later and they can apply for projects companies outsource through RefugeesWork. All the learners become part of digital collective Coding Amigos, that we started with international crew of developers with activist streak already 3 years ago. We meet in Berlin 2x a week and co-work together on client projects or our own apps that we in long term want to connect in a circular economy. For us - even though circular economy is usually connected to recycling - that means that supply chains form supply circles and money is not loaned by governments and other usual suspects and end up in always the same pockets who save it and don\u2019t even know what to do with all the money.', u'entity_id': 769, u'annotation_id': 10846, u'tag_id': 1658, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 29067, u'annotation_id': 10845, u'tag_id': 1658, u'entity_type': u'comment'}, {u'quote': u"Thank you for sharing this very interesting experience.\n\nThe language is for sure the most powerful \u201cvehicle\u201d for integration and new ways of teaching might make it happen faster and deeper. Language also can instigate to newcomers a different view of themselves by providing new words, different expressions and more detached emotions.\n\nI wonder if you ever involved second generation Italians in your projects. I was just reading this article that made me think of many connections with your activities.\n\nI'm pretty sure also @Franca and @Medhin_Paolos may be interested.", u'entity_id': 9935, u'annotation_id': 13080, u'tag_id': 2220, u'entity_type': u'comment'}, {u'quote': u'Asnada is an association born in 2010 inspired from the strong desire of investigating the role of the language in integration processes. Through our social and educational work, we try to answer a question: how can we live together taking care of our specific differences?\xa0 Far from the identity concept, we make the most of our similarity, using the new language (Italian) as a common ground. We have opened a first school for refugees and asylum seekers and, some years later, a school for unaccompanied minors. We are now nine (eight women and a man) coming from different backgrounds (Journalism, Pedagogy, Classical Studies, Education, Psychology, Cultural mediation, Languages) and ages (from 25 to 55).\xa0\nOur schools are the places where we try to build up familiar relationships and a sense of community, but also the place where we try to understand, together, the contradictions of the world we live in. The learning group has here an essential role because it\u2019s the context in which every single student find his place, support and the courage to express himself. The variety of writing and speaking levels we look for in the student group is meant to lead to a free and informal circulation of knowledge and language skills, creating a context where the directory of teaching is also transversal, not only vertical.\nThe language we teach is not only the language of the daily routine, but an intimate language which allows people to reshape and rename their past and present experience, together with their aspirations and future projects. In order to allow everybody to have the opportunity to express himself or herself, we don\u2019t only use the spoken and written language: theatre exercises, songs, handcraft workshops, games, silent books, pictures and images, silk-screen printing, short films are the means through which explore the new language and ourselves.\xa0\nMontessori\u2019s instruments give an important support to the learning process, as they help reading and writing but also studying grammatical and syntactical structures. We both use original instruments (for example, sandpaper letters, movable alphabet, set analysis and grammar symbols) and readapted tools we calibrated on purpose for the whole group.\nDuring these years we\u2019ve been meeting more than six hundred people coming from all over the world. This exchange of unconscious knowledge constantly creating new ways of schooling and in these years made us organize specific projects based on students real needs or passions:\xa0\n\nThe discover of the importance - especially for illiterate students - of learning at a slow rhythm, also thanks to practical activities, is the reason why, three years ago, we started to organize \u201cThe ground language\u201d (La lingua della terra), a class around the growing of a vegetable garden and the study of the organic agriculture principles.\xa0\nThe comprehension of the role of the mother tongue in our life, as the skeleton of our soul, press us to find a way to support and promote all the mother tongues. So, we hold up a group of story-tellers named \u201cRoots and Branches\u201d (Radici e Rami) sharing traditional and fairy tales, poems and myths in the first languages and in Italian.\xa0\nDue to the need to use as soon as possible the new language also in order to better understand the world where we are living, with its contradictions, injustices and opportunities, we started to explore the city not only as tourists but as researchers: recorder, camera and a set of questions are the equipment with which we walk through the city asking people we meet to share their ideas, their point of view and experience about an issue which is meaningful for all the group.\nThe importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.\xa0\n\nFrom 2016, Asnada collaborates with the groups Nuovo Armenia and Gina Films. The City of Milano has assigned to us a farmstead (Cascina) situated in the centre of Dergano, a neighbors in the north of the city, in order to build up a place where migration issues could be faced through a cultural production, developed with the foreign communities themselves.\xa0\nOur goal is to reshape the collective perception of the migration issue with the direct experience of a possibile living together, in order to avoid the usual relationships based on charity or humanitarian help. The \u201cCascina\u201d will be the place where, besides our schools, will be held a multilingual cinema where foreign and Italian people will watch movies in original languages, but also a cafeteria (with controlled prices) and a coworking area. The collaboration of schools and cinema\xa0wants\xa0to start a process of thought consciousness by crossing these two situations: italians dealing with foreign languages, and foreign people dealing with Italian and other foreign languages.\nThe \u201cCascina\u201d will be also a place for permanent education in intercultural field, where we will set meeting, readings, conferences and workshops open to all citizen, with a particular regard to the foreign communities of the neighbors.', u'entity_id': 828, u'annotation_id': 10854, u'tag_id': 2220, u'entity_type': u'post'}, {u'quote': u'I am wondering if the\xa0community would have gotten better if it was organised by the\xa0groups in question\xa0instead of the municipality.\nWhen talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?)\nBut did it become easier to\xa0learn\xa0a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?', u'entity_id': 10365, u'annotation_id': 10853, u'tag_id': 2220, u'entity_type': u'comment'}, {u'quote': u'Hello all, my name is Franca, I come from Italy.\nAbout me.. philosopher, interested in post-structuralism, new ways to do international cooperation, passionate about Geopolitics and China-Africa relations. I\u2019ve worked a lot with refugees, doing legal orientation, helping them to find houses, jobs, but also writing projects to get funds to create new spaces of inclusion.\nFor me it\u2019s interesting to see how many edgeryders are interested in migration or refugee issues and what are the connections to spring up from the many well known problems of working with refugees. I think that it\u2019s possible to underline some key issues when talking about care in this context .\n\nHelping Relationships vs Peer Relationships\nKnow your rights vs Rights as a cage\nIntercultural problems and Empathy\nInclusiveness in our society/community: avoid ideological and too theoretical approach\n\nA little bit about my experience: In particular I would like to speak about my working period during the so called \u201cNorth \xa0Africa Emergency\u201d for 3 years. It was a really hard situation for our (Italian) reception system. We were in the paradoxical situation to tell them: \u201cyou are an asylum seeker, you HAVE to be an asylum seeker, if you want to have any chances to stay in Europe\u201d.\nIn effect after the Arab Spring Revolution (2011) everything changed. A lot of people that came from Horn of Africa or from other Sub Saharian regions and were in Libya for work decided to come in Europe. Gaddafi\u2019s death meant the end of every agreement \u201cPetrol vs Migrants\u201d that Italian Government had signed with Berlusconi in 2009 (for more details, this Guardian article). So you\u2019d have more asylum seekers in Europe, but also different routes, different countries of origin, different reasons to leave their countries.\nIn 2011 asylum seekers in Italy were more than 40.000 (4 times more than 2010, Eurostat) and Italy became the fourth country for the number of claims submitted, mainly from Nigeria,Tunisia, Ghana and Mali. Most of them have lived for many years in Libya, illiterate in their own native language, living in segregated conditions of work or in the terrible detention centers.\nThe history is long and I\u2019 don\u2019t want to become boring, but only to say that it\u2019s not possible to speak about refugees in general when trying to be of real help. We have to think about the countries where we are and where they come from (for example 90% of Syrian refugees that arrived in Italy decided not to ask asylum here, but in other north EU countries), the migration routes, the particular war conditions, but also the economical ones..\nFor all these reasons it was hard to prepare asylum seekers during North Africa Emergency because they came here for Lybian crisis and most didn\u2019t leave their countries for reasons of \u201crace, religion, nationality, membership of a particular social group, or political opinion\u201d (Geneva Convention) or for war crisis in their countries (subsidiary protection). And so it was difficult to explain them that formally they have to be asylum seekers, that we need to find these elements in their stories. How could we help them? I usually do some group or individual meetings to inform them about procedures, about what does it mean to ask asylum and I prepare them for the Audition. How to help them to underline important elements in their stories, not lying... A lot of also ethical questions..(Legislation vs Reality)\nA relation of care: teaching a foreign language\nThe relations between us is a relation of help. Sometimes you can help someone too much.\nThe question is more to create opportunities for people to be really active (refugees as #nospectators). There are language barriers, cultural misunderstandings, different contexts of life, different expectations.\nIn this complex and nonlinear context of work that I would like to start from the first point: the challenge to learn a new language, the language of the recipient country. It could be difficult and, in some situations, also impossible, like a WALL.\nThis could be because learning a language means that you accept to be in a country, you decide to start again your life. For a lot of vulnerable people that are victims of violence (in their countries of origin or during the migration travel) it could become a catalyst of bed experiences.\nSo learning a language becomes the first step to say: \u201cI\u2019m here. I would like to take part in this new society and new community.\u201d\nFor all these reasons we needed to share knowledge and experiences about \u201chow to teach in more effective way?\u201d, we needed to create a community - or better to create a space for a community of italian schools! So we started with: www.milano.Italianostranieri.org\nIt is a platform of the Municipality of Milan to help foreigners find a school of Italian; there are a lot of problems to find the right schools, also because there are a lot of schools but not connected.\nWe saw that there is this tendency to work alone, providing a service but without \xa0sharing knowledge, critical points.. We knew people that attend 3 different classes, for months, \xa0but they couldn\u2019t speak Italian!\nSo we decided to open our website to every school, private, public, run by volunteers, by NGOs.\nIt\u2019s not simple to help, to take care of someone. It\u2019s a relation full of responsibilities, and good intentions often aren\u2019t enough. We noticed also some schools that are so active in helping their students, helping them in legal stuff or finding jobs.. But all these activities could be dangerous, create a bubble, a dependence relation, mixed with ideological thoughts ..\nYour students are not yours.\nTo create a community we realized \xa0real life meetings between teachers and schoolmakers. Every school has the possibility to post directly activities, news. So everyone can have an always updated map of time classes, levels, locations etc; But also a moment of exchange between teachers, methods and materials. The teachers all together wrote also an handbook for teachers (in Italian only). We also created an e-learning database to help people to find free resources on internet and a lot of videos (in 5 languages) to explain Laws. Education system...\n\xa0\nI\u2019ve been asked what projects I think can really make a difference: Projects that work on the concept of resilience,\xa0avoid that people identify themselves with their own pain.\nWe saw a lot of people that 5 or 6 months after their arrival start to fade, to turn off. During the first months you hope that your rights became effective, job, home.. But nothing happens. Your life becomes full of complaints.\nA very interesting school that is part of the community is for example, Asnada. It\u2019s a Montessori/Experimental\xa0school. The idea is to teach in a different way. Helping people to use this new language not as a \u201cstranger\u201d language. Usually you start to have 2 languages: the native one that is the language of feelings and relationships and a second language that is the language of bureaucracy. The idea is to teach a language that helps you to construct your new identity, \u201ccreate your new life here in a new language\u201d.\nSo the lessons became a workshop where we, all together, construct the language, with different ways, methods (arts, music, plays..) and also being a community.\nSo in my opinion it\u2019s really important to be able to find new ways to take care, creating effective spaces of meeting, of real exchange.\nWork on resilience, opening workshops where people can create something (for ex. FabLabs, Makerspaces..) using open technologies (like Raspberry Pi) could become new ways to take care of people in really big troubles, with strong vulnerabilities and help them to start again.\nMaybe Opencare, Edgeryders community could be the right place where to start!!\nWhat do you think?', u'entity_id': 515, u'annotation_id': 10852, u'tag_id': 2220, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 7850, u'annotation_id': 10851, u'tag_id': 2220, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 504, u'annotation_id': 10850, u'tag_id': 2220, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 801, u'annotation_id': 10849, u'tag_id': 2220, u'entity_type': u'post'}, {u'quote': u'We are not open by default, but we do use some of the strategies of the open source movement. Example: some migrant families from Arabophone countries wanted courses of Arabic for the children. We helped them set them up, and set them up in the market. The logic is this: if the market becomes an open platform for people to do stuff, more people will go there. This will create more business opportunities for the shops: you went for the Arabic lesson, it makes sense to do your groceries there too.', u'entity_id': 804, u'annotation_id': 10848, u'tag_id': 2220, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 10855, u'tag_id': 1660, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 10856, u'tag_id': 1661, u'entity_type': u'post'}, {u'quote': u"However, more and more\xa0teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am\xa0surfing that wave, but STEM has become\xa0a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium\xa0are implementing\xa0smart boards, apps, school fablabs etc.\xa0without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc.\xa0rely on technology to avoid changing their behavior. Ironic, because reality is the opposite.\nWe do new biology education and that is\xa0our trojan horse:\xa0we can hide a new method in the new technological content that we bring. This also means that these changes to the methods\xa0won't be too radical. What we do\xa0is accepted as a technological innovation, but hopefully the changes in method will\xa0add\xa0to the slow collective learning process on different methods.", u'entity_id': 15297, u'annotation_id': 10858, u'tag_id': 1662, u'entity_type': u'comment'}, {u'quote': u'A couple of years ago i participated to a contest called \u20185 voor 13\u2019 that gave people the challenge to find through use of new technology solutions for healthcare problems. It was organized C-Mine Genk, an innovation laboratory in the old coalmines of the Flemish region of Limburg. I got selected as one of the finalist for my solution for a solution for the intergenerational gab, commonly known as the kids that don\u2019t visit grandma anymore because she is to old\u2026\nFor my solution I started by looking at the obvious part: intergenerational contact is good for the health of the elderly and also good for the development of the kids on multiple levels. So what was missing is a tool that brought them together.\nI grew up in a rather unconventional setting for people of my generation and later (90s kids like the internet would say) My parents and i shared the house with an elderly woman that wasn\u2019t my grandmother but the godmother of my dad. She was rather cultivated woman with brought knowledge about geography, literature and history. She helped me out on my schoolwork and we shared our interest in reading the news. When she started having difficulties to move out of the house, I helped her staying young by introducing her to the then new technology called DVD and PS2. We played bowling on the Wii and if she would have stayed around longer, I\u2019m sure she would have used my tablet. In opposite to my grandmother who was visiting us every week, my \u2018m\xe9m\xe9\u2019 stayed young in her head, and i think it was patly thanks to our dayle exchanges. She would learn me about history and i would learn her about technology.\n\xa0\nSo when designing my idea i took this story and tried to create the mechanisms that made it work and what was needed to scale up. I found that people where already implementing wii\u2019s in elderly homes to give them exercise. While this is a good idea for them to exercise, the intergenerational part was still missing. So how could we create a game where kids needed to come to the elderly without them having the feeling it was a burden?\nWell you know those games on your phone where you need to do repetitive tasks to go up levels to beat new monsters, like 99% of all mechanics of Role Playing Games? Why not extrude those mechanics of training to the elderly. Give them exercises they can do all day to gain skill points. Arm movements will help the Atk stat for example, Balance will help Def stat and so on. The twist is that the kids playing the game will need to go physically to the elderly to get their little guy leveed up. Want to beat a new boss, but you miss some skillpoint, well go to one of the elderly homes where they play the game and go talk with them. Maybe the first time the discussion will be pure mechanical, but when returning a bound will be created between the people and discussions will be about more then only the game. You have to see it as an incentive to bring people together.\nAfter presenting this project i finished third and got 500 euro\u2019s to spend on material for the project. At that time i was even less into the entrepreneurs world and i failed to continue this project.\xa0 I still think there are some logics and mechanisms that could be interested to work out. Anybody that is willing to use this is free to do anything with it, as long as he gives me a sign about it. It would be awesome to prototype it.', u'entity_id': 783, u'annotation_id': 10857, u'tag_id': 1662, u'entity_type': u'post'}, {u'quote': u'Jean: There is a desire of using new ways of technology to organize his place within the society je cherche a me socialiser, trouver une occupation profitable, mais je voudrais rester dans la marginalit\xe9. Find a meaning in his life, but stay at the edge of society.', u'entity_id': 541, u'annotation_id': 10860, u'tag_id': 1663, u'entity_type': u'post'}, {u'quote': u'I accuse: Technocrats that have made healthcare more \u2018efficient\u2019 by buggy information technology. Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.', u'entity_id': 11945, u'annotation_id': 10861, u'tag_id': 1664, u'entity_type': u'comment'}, {u'quote': u"Not to be too pessimistic although it's in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results:\xa0common decency is no longer enough and one has to have grit. In other words, I feel\xa0more and more that any ambitious effort to lead to\xa0greater equality, access, fairness in the world needs to become somewhat\xa0political and build consistent support behind them.", u'entity_id': 6933, u'annotation_id': 10863, u'tag_id': 1665, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 17588, u'annotation_id': 10862, u'tag_id': 1665, u'entity_type': u'comment'}, {u'quote': u'What comes through your posts beautifully, @rachel, is the dimension of knowledge, experience and care (in the sense of being careful, rather than the other vital sense of caring for each other). The technology is secondary. Your posts here suggest that attention to the detail in the process is much more significant than, say, the difference between using a domestic pressure cooker rather than an official autoclave for sterilization.', u'entity_id': 38977, u'annotation_id': 11728, u'tag_id': 1914, u'entity_type': u'comment'}, {u'quote': u"Good point on the organizations @Noemi.\xa0I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there.\xa0Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It's clear that they don't have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?", u'entity_id': 11841, u'annotation_id': 10867, u'tag_id': 1666, u'entity_type': u'comment'}, {u'quote': u'So on the one hand we spend million dollar research to refine technology that is not widely used!!!!. Will our institutions and society implement the provision of such technology!?', u'entity_id': 516, u'annotation_id': 10866, u'tag_id': 1666, u'entity_type': u'post'}, {u'quote': u"1.\xa0Often we (technicians) get carried away by fascinating possibilities of\xa0technology. Tech becomes interresting in it's own right rather than a means to solve a specific problem and @Moushira\xa0has a good start on that. Sometimes it even creates new health problems. Here the\xa0the mouse as a modern a health hazard comes into mind (it's provoking RSI,\xa0Carpal tunnel syndrome etc. simply put:\xa0wrist problems). It's easy to imagine similar issues.", u'entity_id': 16244, u'annotation_id': 10865, u'tag_id': 1666, u'entity_type': u'comment'}, {u'quote': u'Working as an artist, I saw that the city was failing to adapt to the emerging information economy - South Yorkshire had the lowest uptake of information technology in the UK. Meanwhile, I was making art from trash that I found in skips. Not only was the trash free (yes!) it seemed to me to be the most suitable material with which to make art about urban decline.', u'entity_id': 1710, u'annotation_id': 10864, u'tag_id': 1666, u'entity_type': u'post'}, {u'quote': u'Now this leads to two different considerations:\n1 Based on my design experience, it is extremely hard to convince workers in the standard medical field (hospital,\xa0primary care physicians, etc...)\xa0to adopt a new kind of CRM software for multiple reasons: regulations issues due to privacy and national laws, obligations in using a specific software, affection to a well known software in contrast to the commitment in learning a new one,(even when the new one has better user experience...\xa0)', u'entity_id': 33771, u'annotation_id': 10868, u'tag_id': 1666, u'entity_type': u'comment'}, {u'quote': u"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge.\nEurope's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population.\nThe rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future.\nEducation, learning & the value of teenagers\nTraditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways.\nTeenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant.\n\xabFuture Tools\xbb project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. \xabFuture Tools\xbb is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation.\nProvide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways \xabFuture Tools\xbb will engage people in fostering a society with greater equality, solidarity and sustainability.\n\xabFuture Tools\xbb is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood\u2019s daily activities and funnel the parents\u2019 interest in social promotion for their kids towards a more inclusive society.\nThe abundance of open resources that can be freely accessed through personal learning environments to learn digital skills \u2014such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world\u2014 is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future.\nNeighboring environment\nThe neighborhood as a community comes to relevance in the task of \xabhelping grow adults\xbb. The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities.\nIt is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community.\nIt is sometimes sad hear stating that what is being promoted for innovation in the field of education \u2014on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other\u2014 are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.", u'entity_id': 796, u'annotation_id': 10869, u'tag_id': 1667, u'entity_type': u'post'}, {u'quote': u"My view is that most people living on the camp consider it to be a temporary pit stop before they get to the UK (even if it's 'temporary' for 9 months or more) and so aren't keen on setting up services long term on the camp when they could be in a lorry tomorrow night heading to Britain.", u'entity_id': 39334, u'annotation_id': 11656, u'tag_id': 1668, u'entity_type': u'comment'}, {u'quote': u'Originally the camp was made up of tents and very temporary structures.', u'entity_id': 39328, u'annotation_id': 11635, u'tag_id': 1668, u'entity_type': u'post'}, {u'quote': u'The event took place in June 2016; there I brought the rough idea of a project called Solbnb (Solidaritybnb).\nSince then the project merged with two other initiatives, which were also trying to create an alternative to Airbnb in Amsterdam and Barcelona, under the name of Fairbnb. Nine co-founders from five different countries and with an age range that goes from 24 to 50 are working together to build the platform along with a growing community.\nThe platform with shared ownership and control will be non-extractive, inclusive and cooperative.', u'entity_id': 829, u'annotation_id': 10872, u'tag_id': 1668, u'entity_type': u'post'}, {u'quote': u"I think the wording is a good point. Mental health\xa0to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available\xa0out there,\xa0how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further.\nI'm looking forward to the online discussion on Monday, thank you for setting it up!", u'entity_id': 12885, u'annotation_id': 10875, u'tag_id': 1669, u'entity_type': u'comment'}, {u'quote': u'This doesn\'t have to be a \'full-blown\' mental illness, but any thing that has weighed on them emotionally.\xa0\n@Moushira suggested yesterday in our community call that engaging people to share their issues shouldn\'t be put under headers of "mental health" but under something more like "emotional health". Similarly, \xa0@Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness\xa0can contribute to lowering the threshold as mentioned above.\nGuys, next Monday we are hosting an online\xa0conversation about emotional care, feel free to join in at 4:30 PM.\nPS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.', u'entity_id': 12389, u'annotation_id': 10874, u'tag_id': 1669, u'entity_type': u'comment'}, {u'quote': u"Thanks @Natalia, re 'volunteer their time to work on their research' \xa0I'd like to point out that we do not consider it research, rather a quest. The research has been done, it's about applying the results and create value for the comunity.", u'entity_id': 28462, u'annotation_id': 10873, u'tag_id': 1669, u'entity_type': u'comment'}, {u'quote': u'radicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA.', u'entity_id': 6407, u'annotation_id': 10876, u'tag_id': 1670, u'entity_type': u'post'}, {u'quote': u'Regarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved.', u'entity_id': 19731, u'annotation_id': 10883, u'tag_id': 1672, u'entity_type': u'comment'}, {u'quote': u'In 2014 Sara\xa0Savian\xa0and Mauro Alfieri started their journey with a \u201ctest on sensors \u201cand they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.\xa0 The intent was to explore how it can be used? How can it add value and be of use socially?\xa0 What could be built on this foundation? These discussions could change the course for many participants.', u'entity_id': 861, u'annotation_id': 10892, u'tag_id': 1676, u'entity_type': u'post'}, {u'quote': u'pensource laser cutter, called Risha, that operates via mobile phone.\xa0\xa0 I am also working on another project that helps introduce Bedouin women and kids in the mountains to smart textiles, and I am a consultant to the Wikimedia Foundation (the one that runs Wikipedia), working on helping find out what readers want (because no body knows yet, imagine!).', u'entity_id': 5524, u'annotation_id': 10891, u'tag_id': 1676, u'entity_type': u'post'}, {u'quote': u'Really hard one: We have a flag over our head, marking our belonging to a certain group of people with common "values", the first one being same nation based on tradition/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don\'t have time/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our "benign\xa0attempts to civilise them"(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.', u'entity_id': 26012, u'annotation_id': 10894, u'tag_id': 1677, u'entity_type': u'comment'}, {u'quote': u'Current status/stage of the project\n\u200b1) Setting the theoretical ground with references to relevant texts for this idea from thinkers like: Michael Foucault, Silvia Federici, Cristina Morini, Yuk Hui, Donna Haraway, among others. Based on this theoretical ground I would like to gain insight and discuss the approach with experts from the OpenCare network as well as with possible users from the local community.', u'entity_id': 837, u'annotation_id': 10895, u'tag_id': 1678, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 815, u'annotation_id': 10903, u'tag_id': 1679, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 11214, u'annotation_id': 10902, u'tag_id': 1679, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 24446, u'annotation_id': 10901, u'tag_id': 1679, u'entity_type': u'comment'}, {u'quote': u'I find it hard to think back and know how I escaped from these suicidal plans. There is somehow Hope to be found at rock bottom depths of depression. From that lowest point I resolved to get well and stay well and to throw everything at the problem. I took personal responsibility for my mental health difficulties. Instead of just relying on medication to work on its own I added other tools to the mix. I did a long course of Cognitive Behavioral Therapy. This helped with the crippling anxiety and negative thoughts I suffered from. I began to get a lot more exercise into my life. I walk my dog every day and go to the gym regularly. I did the Wellness Recovery Action Plan (WRAP) course a few times until it became a regular part of my life and a great tool to help me every day. Supports are very important. I have always had great support from my family and friends. However it can sometimes be very difficult to discuss some of these topics with family and friends and I worry about burning them out by talking about the same old issues over and over. This is why I joined a mutual support mental health group called GROW.', u'entity_id': 562, u'annotation_id': 10900, u'tag_id': 1679, u'entity_type': u'post'}, {u'quote': u'community" as your most important resource in coping with all these problems. Several people here seem to agree with you. This suggests that a good way to help mental health patients might be to turn every one of them into a healer for others, participating into a community healing itself. This came up in the story by @alan . His doctor suggested he gets involved in mental health advocacy immediately after making the diagnosis (full story). What do you think?', u'entity_id': 20576, u'annotation_id': 10899, u'tag_id': 1679, u'entity_type': u'comment'}, {u'quote': u'Team JUS was on board!\xa0They\u2019re working on design that explores vulnerability: We want to research objects that people are handling or certain gestures they are doing while in therapy. Can we find a certain patterns in these behaviours or interactions? Maybe we can do something with it? We found in the interviews/chats we started with our peers as well that it was very difficult for them to open up. We also had some observations how to create a sharing environment', u'entity_id': 5658, u'annotation_id': 10898, u'tag_id': 1679, u'entity_type': u'post'}, {u'quote': u"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.", u'entity_id': 7782, u'annotation_id': 10897, u'tag_id': 1679, u'entity_type': u'comment'}, {u'quote': u'Have you looked into art therapy or therapeutic gardening?\xa0Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and\xa0"an old soul" (we like to joke :))\xa0might be able\xa0to offer more\xa0advice. Hang in there.', u'entity_id': 21301, u'annotation_id': 10896, u'tag_id': 1679, u'entity_type': u'comment'}, {u'quote': u'community level is key, and getting famous/successful people to champion the cause would be a big help. And professional counselling service for individuals effected by these issues would help straight away, and also would be usefull along the journey as yet unknown challeges will surely appear.', u'entity_id': 20403, u'annotation_id': 10904, u'tag_id': 1679, u'entity_type': u'comment'}, {u'quote': u"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.", u'entity_id': 7782, u'annotation_id': 10907, u'tag_id': 1680, u'entity_type': u'comment'}, {u'quote': u'Hello and welcome, @ybe ! This is a suggestive image: a therapist driving her bus into the sunset, looking for traumatized people to help out.', u'entity_id': 7567, u'annotation_id': 10906, u'tag_id': 1680, u'entity_type': u'comment'}, {u'quote': u'We, psychotherapists, stay in our daily practices. We don\u2019t move. We don\u2019t reach out and explain things to people. We do things with individuals - why not try to work with a group, and talk to a group? This is what I\u2019d rather do. The more I thought about it, the more sense it made.', u'entity_id': 740, u'annotation_id': 10905, u'tag_id': 1680, u'entity_type': u'post'}, {u'quote': u'The Reef', u'entity_id': 6272, u'annotation_id': 12498, u'tag_id': 2314, u'entity_type': u'post'}, {u'quote': u'Besides public hospitals and private clinics, these structures harbour initiatives ranging from non-profit actions\xa0by international and domestic NGOs or philanthropic organisations (including the church), to volunteer initiatives and informal groups. Over the last years, such initiatives have focused on the distribution of primary need goods (ie. clothes, food, education), based on a strong narrative around the solidarity and exchange economy. In parallel with citizen-led initiatives, many city councils have launched municipal Social\xa0Grocery\xa0stores or Pharmacies. In many cases, local community action is combined with public social structures.', u'entity_id': 736, u'annotation_id': 10923, u'tag_id': 1683, u'entity_type': u'post'}, {u'quote': u"Hi Noemi, in response\xa0 to your post, I would say we want to be inter- dependent,\xa0 not independent!\xa0\xa0\xa0 I guess I wrote the original post in rather a hurry, in response to the Open&Change\xa0 call, so\xa0 it probably didn't get it quite right.\xa0\xa0 I see our project as forging some third way between state or charity\xa0 ownership on the one hand, and private for-profit ownership on the other.\xa0 it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.\xa0 I envisage a movement of care homes,\xa0 highly networked,\xa0 helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are\xa0 starting slowly", u'entity_id': 24250, u'annotation_id': 10922, u'tag_id': 1683, u'entity_type': u'comment'}, {u'quote': u"I'm grateful to Ginette for her opinions and super curious to see if she has experienced victories too in her work, even small ones. In a conversation I had the other day with a friend well versed in NGO work and having quit, she mentioned something suprising to me: that for her it is the proper third sector having a chance of changing things, not the bottom up grassroots. So you see, all sorts of distinctions are being made, but I recognize the bottom line - the need for structured processes,\xa0paths to access resources, influence etc.", u'entity_id': 7853, u'annotation_id': 10921, u'tag_id': 1683, u'entity_type': u'comment'}, {u'quote': u'By new ways of giving back the floor to doers, do you mean new decision making models? Or more tolerance for the doers in an organisation run in traditional way, a way of compromising?', u'entity_id': 17774, u'annotation_id': 10924, u'tag_id': 1684, u'entity_type': u'comment'}, {u'quote': u'You don\u2019t have to be an expert on food or run a civic organisation to claim a say in a pressing issue - the issue is 100% unresolved and no one can claim authority on it.. so: blank slate to experiment!', u'entity_id': 10666, u'annotation_id': 10927, u'tag_id': 1685, u'entity_type': u'comment'}, {u'quote': u"Most 'activism' today is done by do-ers. Bottom-up initiatives that took it upon themselves to solve problems that governments should take care of.\xa0They noted that this shift to just getting your hands dirty and\xa0not\xa0wait for\xa0government action\xa0is actually quite\xa0a neo-liberal way of solving problems.", u'entity_id': 20946, u'annotation_id': 10926, u'tag_id': 1685, u'entity_type': u'comment'}, {u'quote': u"A large amount of professionals who get burnt out couldn't live anymore with the contradiction between what is asked and what should really be done. And I don't speak about\xa0ethics from ideological point of view. Just the tension between what is asked and what true professionals believe should be done (eg : social workers in big institutions, engineers in industrial companies, nurses in hospitals,...). The fact that there\xa0is no place anymore for true\xa0dialogue,\xa0exchanges and co-construction around their own practices worsened the situation.", u'entity_id': 15056, u'annotation_id': 10925, u'tag_id': 1685, u'entity_type': u'comment'}, {u'quote': u'This might happen at a time when the community has other objectives as well ("setting up a farm for a young couple"). You can ask of the community to support your treatment, but its\xa0costs are not simply discharged into an anonymous "system": they are borne by your own brothers and sisters. As a result, everyone focuses on not spending more money than is necessary, and\xa0"[Amish] communities are highly interested in health education and disease prevention".', u'entity_id': 14083, u'annotation_id': 10929, u'tag_id': 1686, u'entity_type': u'comment'}, {u'quote': u'I came across this great article on how the Amish culture and their approach towards healthcare\xa0in the United States. The Amish -\xa0a culture of independance and thrift may be a way to balance community support and individual responsibility. A cost-conscious,\xa0community-based take on American healthcare may be able to teach the general population a thing or two about dealing with a broken healthcare system. Health care practices vary considerably across Amish communities and from family to family. Many Amish use modern medical services, but others turn to alternative forms of treatment within their community. \xa0The Amish society accepts responsibility for their own actions and chooses not to depend on services offered by the state and Amish communities opt out of the government-funded insurance. Opposed to commercial insurance and they pride themselves on taking care of their own. To assist one another, they willingly offer donations when a member of their community becomes ill.\xa0It may not fit in this area, but I thought it was an interesting read a thought I would share. \xa0\nExcerpt from the article: \xa0\nPlain communities are highly interested in health education and disease prevention.\xa0Coming from an ethic of thriftiness, many Plain people distrust the motives of hospital administrators and even doctors themselves. They believe a profit motive can influence courses of treatment. They are also keenly attuned to unnecessary expenditures within the system.\n\u201cIn the Amish world, healthcare is seen as a ministry,\u201d says Wengerd, \u201cwhich is exactly what healthcare in the [non-Plain] world used to be.\u201d Remember apprenticeships and house calls? The doctor used to be viewed like a minister who sacrificed his life for the patient, but there has been a shift. \u201cThe patient now sacrifices his livelihood for the doctor\u2019s wellbeing.\u201d \xa0\nRead the full article here : \xa0http://qz.com/695101/the-amish-understand-a-crucial-element-of-modern-medicine-that-most-americans-dont/', u'entity_id': 713, u'annotation_id': 10928, u'tag_id': 1686, u'entity_type': u'post'}, {u'quote': u'Several years ago @Jean_Russell curated a collection of essays around the theme of thrivability (available here) and recently published a book on how to build thrivable organisations.\xa0\n\nThey may be helpful as a starting point? Maybe Jean has some advice to share?', u'entity_id': 24354, u'annotation_id': 13081, u'tag_id': 2221, u'entity_type': u'comment'}, {u'quote': u'The only thing you really need are the number punches. With them you can quickly improvise a (reusable) ticket system.\nThe details of implementing it can be all kinds of ways - not necessarily a first come, first serve. What I could imagine works fairly well is having a clock-like indicator which groups of tickets are called for when, and if available a loudspeaker that can also call things out.\nOne nice thing about the fimo stuff is that it is pretty easy to mix in a unique way, so making fakes is very difficult. And you have to look closely to see the number on it, which reduces fighting for the "best numbers" (you also do count downs vs count ups).\nA pack of 570g can easily be made into 570 tickets. Cost per 1000 such long lasting tickets would be around 30 EUR.', u'entity_id': 26056, u'annotation_id': 10930, u'tag_id': 1688, u'entity_type': u'comment'}, {u'quote': u'@Michielstock has met with Noel Carrascal to help out with molecular modelling\nAfter the last meeting it became clear the microfluidics avenue of research is currently outside the main focus of Open Insulin (developing insulin vs optimizing\xa0a lab-on-a-chip device to develop open insulin). However, some of us are going to go further with the microfluidics with\xa0a broader goal in mind.\xa0At some point\xa0it may help the insulin research\xa0(or vice versa), but it is not the goal.\nThe biohackathon in July is on, yet the purpose has shifted: Bram and Michiel are joining with a broader microfluidics project idea in mind, others are welcome to tag along as it will be fun, interesting and nice to visit Waag Society & Amsterdam. More here.', u'entity_id': 31639, u'annotation_id': 10934, u'tag_id': 1689, u'entity_type': u'comment'}, {u'quote': u'foreseeable future. The numbers explode too quickly.\xa0\nThat does not mean Open Insulin should not deploy digi.bio stuff. After all, it as much for the learning journey as it is for producing insulin. But you guys will still need to apply domain expertise to figure out which sequences are most promising, before testing.', u'entity_id': 16210, u'annotation_id': 10933, u'tag_id': 1689, u'entity_type': u'comment'}, {u'quote': u'Testing many options would be very resource intensive, and this is where the microfluidics chips come in. A small demo at one of the Digi.bio events can be found here\xa0(cool video!). If optimized, the chips would allow for much cheaper and automated testing of the generated sequences.', u'entity_id': 6291, u'annotation_id': 10932, u'tag_id': 1689, u'entity_type': u'post'}, {u'quote': u'I think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?', u'entity_id': 19695, u'annotation_id': 10931, u'tag_id': 1689, u'entity_type': u'comment'}, {u'quote': u'And "you may not have the courage to take a part a 1,000 dollars medical device, but youy definitely have the courage to take apart something that costs 5 dollars."', u'entity_id': 9202, u'annotation_id': 10935, u'tag_id': 1690, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 12342, u'annotation_id': 10936, u'tag_id': 1691, u'entity_type': u'comment'}, {u'quote': u'Could resource scarcity be mitigated through Open Source technologies for recycling of sewage, seawater desalination at scale, deep drip irrigation etc?', u'entity_id': 5234, u'annotation_id': 11141, u'tag_id': 1739, u'entity_type': u'post'}, {u'quote': u'We feel the answer to our problem lies in establishing and expanding that very concept in other camps as well - to involve people in the daily happenings and motivate them to do what they can do best. We will research the willingness amongst the refugees to join such a program as soon as soon as Ramadan is over.', u'entity_id': 703, u'annotation_id': 11167, u'tag_id': 1749, u'entity_type': u'post'}, {u'quote': u"@Franca Locati mentioned something I couldn't forget: she says you can sometimes\xa0help someone too much", u'entity_id': 19161, u'annotation_id': 10942, u'tag_id': 1695, u'entity_type': u'comment'}, {u'quote': u'there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way', u'entity_id': 17482, u'annotation_id': 10941, u'tag_id': 1695, u'entity_type': u'comment'}, {u'quote': u'Theme: better understanding policy in context of a top-down system. Even good policies may be limited in their effectiveness - that is by the time they cascade down to the level of effect/impact they are often either diluted or do not produce the effects desired by the original intentions of the policy no matter how well meaning these might be.\xa0Another way to look at it would be this: living systems theory has turned on its head the Victorian world-view that imagined that unless mankind were imposing order from top down then chaos would ensue. The new sciences - nano biology, quantum theory - have revealed the extent to which order is a natural impulse (fractals\xa0being a beautify example) and that many of mankind\u2019s efforts to date have disrupted this impulse.', u'entity_id': 23982, u'annotation_id': 11182, u'tag_id': 1760, u'entity_type': u'comment'}, {u'quote': u'The majority of residents in the camp chose to not take these options as they are not looking to seek asylum in France, but are trying to get to the UK to reconnect with families. This disconnect between what the French authorities want to achieve', u'entity_id': 39328, u'annotation_id': 11638, u'tag_id': 1760, u'entity_type': u'post'}, {u'quote': u'We are the families of the "Oltrarno", the other or wrong side of the Arno river in Florence, Italy.\nFacing a tough challenge - surviving in the Disneyland of the Renaissance, as a community.\nRight behind the Carmine church, where the Renaissance was born,\xa0families of the most varied background - both traditional and immigrant - run a garden which was donated to the population of the district by the American Red Cross in 1920 and has since been largely seized by a real estate speculator.\nA cross-section of ordinary people of every kind, who are beginning to work together to develop new ways of survival, friendship and beauty\xa0in an era where the "state" is no longer the key actor.\nAs we discover our own needs, our strength, the power of working together, we find that we have a whole world of prospects before us, something much larger than the garden we started out with.\nWe are here to listen and to learn, and of course we would be glad to show you around our side of Florence, should you ever drop by!', u'entity_id': 766, u'annotation_id': 11193, u'tag_id': 1761, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 11192, u'tag_id': 1761, u'entity_type': u'post'}, {u'quote': u'toys', u'entity_id': 707, u'annotation_id': 11194, u'tag_id': 1762, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 674, u'annotation_id': 11195, u'tag_id': 1763, u'entity_type': u'post'}, {u'quote': u"I wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this?\nI should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility.", u'entity_id': 21278, u'annotation_id': 11198, u'tag_id': 1764, u'entity_type': u'comment'}, {u'quote': u'As we gain ground in the journey towards health autonomy, we see just how disempowered we have become when it comes to being able to give and receive the kind of care necessary. We have to fight that disconnection and build the infrastructure in order to give ourselves the space to envision a new existence. We look forward to hearing your stories, to understand your struggles and to collectively create the foundations to answer these monumental questions.', u'entity_id': 5886, u'annotation_id': 11197, u'tag_id': 1764, u'entity_type': u'post'}, {u'quote': u'Our skills workshops so far have included basic first aid, wound care, acupressure and intro to traditional Chinese Medicine (TCM), and an intro to medicinal plants. Coming up we will have workshops on navigating existing healthcare systems, nutrition, addiction and ongoing fitness skillshares. Our goal is that participants can use the resource library to learn about things relevant to their own health, potentially explore different modalities, and either receive aid in navigating the health systems in place or find treatment within the space itself.', u'entity_id': 5886, u'annotation_id': 11196, u'tag_id': 1764, u'entity_type': u'post'}, {u'quote': u"Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc.\n\n@WinniePoncelet, it could be very good if you could elaborate on why you don\u2019t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get?\n\nYou have a good point,@WinniePoncelet, \xa0we could imagine raising funds to have a FES bike that people could try locally.\n\nI\u2019ve learned two things recruiting wheelchair users as testdrivers\n\n\nThere is a perception that it may be physically harmful\nPeople are afraid of traffic. There is a perception that there are nowhere to use the a Handbike\n\n\nAs for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.)\n\nAs for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling). \xa0@Francesco Maria ZAVA\xa0and others we could\xa0work on this", u'entity_id': 23387, u'annotation_id': 13090, u'tag_id': 1765, u'entity_type': u'comment'}, {u'quote': u'Traffic is\xa0scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition \u2013 it is unusually flat for Italy, and that helps.\xa0When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness.\xa0Bicycle lanes where almost absent. As a consequence, only "extreme cycling" happened: young, fit\xa0men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this:\n\nBut over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles\xa0a day.\xa0Eventually, the city council started to take\xa0cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.\xa0\nWhat this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of\xa0early adopters that pave the way (literally, in this case) for everyone else.', u'entity_id': 26048, u'annotation_id': 11199, u'tag_id': 1765, u'entity_type': u'comment'}, {u'quote': u'Transition dynamics\nThe projects I am involved in (ReaGent, Ekoli & Break it Down) are going through transition phases. This requires us to take a step back and deconstruct what we\u2019re doing. It comes at a good time when I\u2019m doing such in depth work with other, often similar projects for OpenVillage.\nWe break down many of the processes that we have, eg. logistics for running the lab space as a community, with the purpose of building new ones. This process unearths dynamics that would otherwise be harder to spot for the community, such as the difference between being an open lab and being a shared lab. And then what that means for being an open, shared lab.\nMid June we had a workshop with the ReaGent team to look closer at our strategy and implementation for the shared lab space. It was fruitful and is the first of several sessions this summer across our organisations to get everyone aligned. In our next location, the financial pressure from the rent will be higher. We need to prepare. Set up our business models and synergies between all organisations. Design the next iteration for resilience.\n\xa0\nIn July I\u2019m attending a Biohackathon in Waag in Amsterdam, where I\u2019ll meet many protagonists in citizen.open science & DIYbio. Over the next weeks, we\u2019re also moving into logistic planning for the sessions at the festival and picking up communication efforts.', u'entity_id': 6459, u'annotation_id': 11203, u'tag_id': 1767, u'entity_type': u'post'}, {u'quote': u'Transition management does not seek to involve stakeholders or to represent a given population; it focuses on selecting change agents. However, any concept of selective involvement comes with tensions. For example, doubts can surface regarding democratic legitimacy. Making clear that transition management is not a decision-making process can assuage these: it creates a setting for mutual inspiration among societal actors, in which new ideas, connections, and actions can emerge.', u'entity_id': 33784, u'annotation_id': 11201, u'tag_id': 1767, u'entity_type': u'comment'}, {u'quote': u'We started indeed with a small group of people. The city of Ghent used the theory of transition management to create a strong group (\u201carena\u201d) to start reflecting on the future. We explained this in this article: http://www.polisnetwork.eu/uploads/Modules/PublicDocuments/thinking-cities-launch-issue-web2.pdf \xa0(page 24)', u'entity_id': 33778, u'annotation_id': 11200, u'tag_id': 1767, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 653, u'annotation_id': 11208, u'tag_id': 1768, u'entity_type': u'post'}, {u'quote': u'I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the "professional care & aid circus" can dock into, and many of the respective group\'s fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.', u'entity_id': 13504, u'annotation_id': 11207, u'tag_id': 1768, u'entity_type': u'comment'}, {u'quote': u'\u201cWe were talking about different languages. To map out what we can as GWK and product designers (UDK) and to figure out what is the responsibility towards what we are studying. Until now what designers were doing and what we were studying was just about making things beautiful. Are we even responsible towards building towards big visions the way \xa0OpenCare is doing? As designers we are always looked upon in a very belittling way - as though we are not capable of contributing to the big issues. But I believe it is part of our responsibility as designers to do this work, because ideally we are focusing not on profiting from it but we can do it just to help. Everyone knows we should help, but no one really does it and people still have prejudices and discriminate. Not many of us know how it is to lead a refugee\u2019s life. How many of us have been discriminated against? For me I was born in Germany, but for a moment I thought well all the refugee circus that is going on has nothing to do with me and I thought it is the responsibility of larger organisations like NGos and the Government to deal with...I asked myself what capacity do I realistically have to help. Then I realised that as someone born in Germany, I walk around the street I hear people discriminating against Asians. And I realised it does affect me, and it is my responsibility to help...It is about the right to be a creative and work not just for profit, but \xa0to help others and how this is deeply human at its core.\u201d', u'entity_id': 494, u'annotation_id': 11206, u'tag_id': 1768, u'entity_type': u'post'}, {u'quote': u'\u201cWe started talking about experiences and what think about care, or what we need for our self to be cared for or give care. I found that we had really different ways of talking or explaining. I had difficulties to say what I was thinking and they only understood me when I made examples. And they totally understood me. But when Nema started talking, she could really articulate herself without giving examples. It\u2019s really interesting as a product designer.\u201d', u'entity_id': 494, u'annotation_id': 11205, u'tag_id': 1768, u'entity_type': u'post'}, {u'quote': u'It could be good to translate the language and vocabulary used by the OpenCare project into language easier to use for product designers. Designers are mostly visual, other disciplines less so. Some bridging of languages could be helpful.\u201d', u'entity_id': 494, u'annotation_id': 11204, u'tag_id': 1768, u'entity_type': u'post'}, {u'quote': u'More whisper translators would be useful.\n\n\nThomas:', u'entity_id': 38811, u'annotation_id': 11740, u'tag_id': 1769, u'entity_type': u'post'}, {u'quote': u'Those working in the Aid Distribution team have to work in intimate personal spaces. The role requires you to enter into the shelters and tents of refugees to communicate with them. Preferably, this requires a translator, but most communication is through non-verbal, gesture and eye-contact. Even with a total language barrier, the way the refugees welcome you into their personal space is heart warming. The experience is unlike anything I have experienced elsewhere. For many British volunteers this immediate intimacy from strangers can be strange and disorienting. It feels odd to accept food, drink and hospitality from people who have so little already. Yet, rejecting the offer also seems heartless. It is difficult to balance these conflicting emotions. I often struggle to balance my desire to be \u2018efficient\u2019 at the task, with being \u2018friendly\u2019 to the people I\u2019m helping. I could spend a whole day working with only 10-15 people: Eating food with them; making notes about vulnerabilities; listening to the needs of their community and drinking sweet milk chai. Then I remember that there are thousands of people on the camp. If I spend the same amount of time with each group it would take years to finish the simple tasks.', u'entity_id': 536, u'annotation_id': 11210, u'tag_id': 1769, u'entity_type': u'post'}, {u'quote': u'\u201cIt was really intersting hearing about your experiences and the difficulties you had. Very interesting to talk from a personal perspectives and the fears you have.\u201d\n\u201cWe discussed the five questions we were given. What I noticed te most that care is a very difficult term. We couldn;t find a term for care in german. This is one part that makes the discussion very interesting but also very difficult. A whole lot of people are going in a direction towards the refugee topic, that seems to be very close to people. I heard about a book from two journalists about political language: some words and terms that are used are producing certain realities. When you use some words regularly especially in the media, it becomes a reality and then there is no alternative. Translating care into a german word, and speaking about it means very different thing.\u201d\xa0\n\u201cWe also tr', u'entity_id': 494, u'annotation_id': 11209, u'tag_id': 1769, u'entity_type': u'post'}, {u'quote': u'Thanks @Living_Streets aka Pieter and Dries. I think I get it now. I also understand the reference to parking: of course cars are a very un-social technology, but since they are so pervasive you need to find a way to get rid of them before you can even start playing around with streets as public spaces.', u'entity_id': 33784, u'annotation_id': 13094, u'tag_id': 2228, u'entity_type': u'comment'}, {u'quote': u'How do people get to the health care when they need it? distance? cost?', u'entity_id': 10261, u'annotation_id': 13092, u'tag_id': 2228, u'entity_type': u'comment'}, {u'quote': u'Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive\u2026.unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.', u'entity_id': 779, u'annotation_id': 11217, u'tag_id': 2228, u'entity_type': u'post'}, {u'quote': u"\u201cFrom streetparking to neighborhood parking\u201d: if we want to create free spaces in streets we have to find solutions for the parked cars in the street. When experimenting with Living street the initiators have to find appropriate places for their cars to park. Not just 'around the corner'. We look for under-used parking spaces at shops, companies, railwaystations, ... This can be in the neighborhood or even more remote at 'long distance parkings'. Each time citizens (on a volunteering basis) test this new way of parking and are supported by our network through (e)-bikes, bus/tramtickets, ... The insights and experience we gain here are used by the local city administration.", u'entity_id': 33778, u'annotation_id': 11216, u'tag_id': 2228, u'entity_type': u'comment'}, {u'quote': u'I wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and \xa0even spam (as I write this, someone calling themselves "Marcel Enyonam" is offering cheap loans on about ten posts).\nMy main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what?\xa0I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it\'s just me', u'entity_id': 8193, u'annotation_id': 11219, u'tag_id': 1771, u'entity_type': u'comment'}, {u'quote': u"3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan\xa0Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve\xa0all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.", u'entity_id': 21489, u'annotation_id': 11218, u'tag_id': 1771, u'entity_type': u'comment'}, {u'quote': u'TICAH met this situation with interventions that emphasised embodied communication and the creative body. They invited those effected to walk a labyrinth together in a peace ceremony and organised body map workshops that brought together different survivors to share their stories. The body-mapping workshops use art skills to trace participants\u2019 bodies and then map elements of their life stories onto this body map: visual elements are added that stand for the individual\u2019s aims, what supports them, the traumas they have lived through and their strengths. These visual records are a way of introducing the details of what happened in captivity back into the community to be held by everyone. So the labyrinth walking and the body-mapping make the real lives, bodies and experiences of the victims a public experience and enable the wider community to listen to and appreciate how these survivors managed to live through painful and unbelievably challenging times.', u'entity_id': 553, u'annotation_id': 13096, u'tag_id': 1772, u'entity_type': u'post'}, {u'quote': u"Hi @ybe. It's a long post now so excuseme if I've skimmed too much. As @Alexander_Shumsky posted the WeHandU\xa0we were talking about the importance of psycological aspects of assistive technology. My experience is that people having sustained a stroke, spinal cord injury or living with MS have a need to talk about it. I's not what you intend by trauma, but I think it could be interesting include your expertice in a 360* service.", u'entity_id': 27812, u'annotation_id': 13095, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u"http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here's an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).", u'entity_id': 26938, u'annotation_id': 11237, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'I\'d like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma\'s through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings "Circles of openness".', u'entity_id': 6401, u'annotation_id': 11236, u'tag_id': 1772, u'entity_type': u'post'}, {u'quote': u"'Are you on a mission? And how come that trauma - such a heavy word, such a serious matter - is your passion?' That is what people ask me when they hear about my tour, about me and my bus traveling through Europe to talk and teach about trauma and to try to soften the pain of trauma. 'No, I am not on a mission (that is a far too 'religious word for me to befriend with) - and yes, trauma is my passion, and I do have a message.\nI really believe that pain should come in the open. That it should be de-tabooed: we should know more about it, understand better what traumatic pain is, how it functions, how it takes possession of us, we should be able to look at it more closely, to be with it (for a while). Trauma, pain, fear ... we'd rather not experience it or watch it happen in someone else's life. It is like with 'death': we know it is part of our lives, we all have to deal with it, and yet we don't - because it's (too) uncomfortable. How to talk about human mistreatments, heavy physical pain, profound disrespect of your person, or situations where you felt like if your life was in danger? How to share the feelings of loneliness and hopelessness that go with such pain? We often do not know how to do that, and try to ban painful events and feelings from our minds, we want to forget about it.\nIt is something in pain itself too. We're hardwired to avoid and suppress pain. It helps us survive, it helps us to go on. Avoiding, minimizing and denying pain is our most natural, short term solution to deal with pain. It is a survival mechanism. It often takes a while, from seconds to minutes, to physically feel the pain caused by an accident, a car crash or a broken leg. Not feeling the pain gives us more time to save ourselves, to get away from danger. \xa0Out of the car, walk away and call the ambulance f.ex. On the long term, however, not feeling isn\u2019t very effective. Because it is impossible to heal from something we don't acknowledge. On the long term, suppressed pain comes back to us, like a boomerang. That is what trauma and traumatic pain is about: it is pain that doesn't seems to go away, pain that stays with us far too long, as a residue of what happened to us.\nI believe that this residual pain needs to be addressed more openly. \xa0\nTraumatic pain can be softened - and it should be. Because unresolved trauma makes us sick, depressed and heavy-hearted. It deregulates us, deeply and on many levels: mind, heart and body. We know that traumatic pain lies at the heart of most contemporary diseases, be they mental or physical, we know that trauma adds to almost every sickness as a major contributing factor. And yet ... the knowledge about trauma and how to address it to lower its dramatic impact on our lives is far from common.\nThat is what my tour is about: I want the world to be trauma-informed.\n\n\n\n\nI want people to come and look at the pictures on the bus and ask questions. I want them to learn about trauma and realize that healing is possible. We can all learn best practices regarding talking and coping. We can all learn to calm down and regulate a body in fight, flight or freeze modus. We can all learn techniques to stop nightmares and flashbacks. We can all learn to help traumatized persons recover. It often takes not more than 15 minutes to help people sleep better: help them release tension before they go to bed, by offering a relaxing breathing exercise, or teach them to intervene in their dreams by using their imagination, by rehearsing a different ending for their nightmare f.ex.\nWe are all on a mission: to a certain degree we all need to become trauma specialists. First, we need to deal with our own trauma's and those of the people around us. We need to dare to feel and face our pain instead of running away from it. Second, there's too much suffering in the world as to leave its resolution to the clinical field or therapeutic setting. Therapeutic knowledge should be accessible to all of us, it should not be protected and copyrighted. Therapeutic knowledge should be alive in the world, not only in shrinks\u2019 offices. That is why I do what I do: share my knowledge about trauma with you, share insights, methods and techniques from the field of trauma healing ... so that we can all, together, ease and soften the pain in our world. \xa0\nI don\u2019t know of any other projects sharing therapeutic knowledge in the way Trauma Tour does. But the idea of a trauma-informed world is related to a growing field of \u2018self care\u2019: taking responsibility for one's own (mental) health by reading self help books, attending self help groups, becoming experience experts, \u2026 It is long known that helping on this \u2018equal\u2019 level, is often more effective than any method or technique. It is also known that the relationship between \u2018therapist\u2019 and \u2018patient\u2019 is a major factor when it comes to healing. If we combine both, \u2018helping expertise\u2019 and \u2018being equal\u2019, it seems a very natural thing to come out of our offices and share therapeutic knowledge with those who suffer. It makes \u2018us\u2019 helpers and \u2018them\u2019 traumatized people equal human beings, fellow human beings. It restores humanity.\nI\u2019m now in the middle of planning my first big tour: driving down the Balkan route and visit Greece in December 2016 / January 2017. If you\u2019re reading this and you want to support Trauma Tour, please check out my website, there\u2019s a list of things you can do to help me : call me in for a training, be my local host on my way down to Greece, put me in contact with people who might need me \u2026 An easy and very effective way to support Trauma Tour is to make a financial contribution - I thank you for that!\nThe production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.", u'entity_id': 795, u'annotation_id': 11235, u'tag_id': 1772, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 24446, u'annotation_id': 11234, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'... if @ybe has found evidence of "digital grieving" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...', u'entity_id': 27820, u'annotation_id': 11231, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.", u'entity_id': 7782, u'annotation_id': 11230, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u"But I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a 'symptom' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.", u'entity_id': 31148, u'annotation_id': 11229, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'Hi\xa0@ybe, Have you considered providing trauma healing for cops? They are the ones who inflict much of the trauma in my area and they could use a big dose of emotional\xa0processing!', u'entity_id': 29075, u'annotation_id': 11228, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u"@Rune I think you're right: psychological aspects should be taken into account. Medical diagnosis and treatment are often very 'traumatic' = overwhelmingly disturbing. I don't know if I am the right person to advise Wehandyou - there must be traumaspecialists more familiar with the people affected by these kinds of\xa0 trauma and the technology involved. Nevertheless, I am open to collaboration. Lets have a bit of a longer conversation on skype? What do you think?", u'entity_id': 28464, u'annotation_id': 11227, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u"I would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? 'Help with 'secondary' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal\xa0 conversation? Should we provide time for individual help too?How many people are involved?", u'entity_id': 26955, u'annotation_id': 11226, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u"In my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.", u'entity_id': 23874, u'annotation_id': 11225, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'Of course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.', u'entity_id': 13679, u'annotation_id': 11224, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'Thx @steelweaver for your comment. As for the somatic apporach, I totally agree. I often use somatic experiencing, especially for chock trauma. Before going to Calais, I need to look up soms good group exercices for the volunteers. Suggestions welcome.', u'entity_id': 13769, u'annotation_id': 11223, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'Hi @ybe, have you read the story of @Village-Psy and the work they do with education on healing\xa0trauma on Mt. Pelion, in Greece?', u'entity_id': 14937, u'annotation_id': 11222, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'I have been working as a trauma therapist since 10 years. It\u2019s not an area that many psychotherapists decide to explore in their daily practice, but ever since I can remember it was the most appealing area of psychotherapy for me. And one that is highly unexplored and somehow underrepresented.', u'entity_id': 740, u'annotation_id': 11221, u'tag_id': 1772, u'entity_type': u'post'}, {u'quote': u"Everyone experiences some form of trauma. Most experience exhaustion. Often trauma comes from being in scary situations that you aren't trained to deal with. Occasionally volunteer social workers, therapists and psychologists stop by the volunteer camps. They offer their services for free. As always, the people who need it the most are most likely to not take advantage of these services.", u'entity_id': 536, u'annotation_id': 11220, u'tag_id': 1772, u'entity_type': u'post'}, {u'quote': u'Through these talks it\xa0came up again and again that a lot of people\xa0really were living through enormously challenging situations and traumas\xa0and very willing to normalise it in conversation\xa0and shrug it off.', u'entity_id': 16456, u'annotation_id': 11233, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing\xa0 exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.\nAlso, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.", u'entity_id': 29079, u'annotation_id': 11232, u'tag_id': 1772, u'entity_type': u'comment'}, {u'quote': u'I dont really have a flag above my head, i am a human and i believe all humans have equal value but it took me years to realize that and bear in mind i question everything, even my own actions, thoughts, feelings. So maybe travelling inwards might solve issues as well? Asking important questions to ourselves or others like: Why do i keep distance from this person? What is the origin of my fear, mistrust, why am i judgemental? Again, how does one accept the idea that he/she is wrong in some fundamental ways? Ego is an obstacle :).', u'entity_id': 26012, u'annotation_id': 11239, u'tag_id': 1773, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 652, u'annotation_id': 11238, u'tag_id': 1773, u'entity_type': u'post'}, {u'quote': u'Like many of the other projects featured in OpenCare, the flexibility of Community Acupuncture \u2013 light on infrastructure, expensive medical equipment or architectural requirements, reliant instead on the portable diagnostic and treatment skills of the practitioner \u2013 makes it well-suited to navigating a disrupted present and an uncertain future. Quite aside from its effectiveness at treating unexplained and chronic conditions (the kind mainstream Western medicine does not excel at curing), having the ability to treat without reliance on fragile, resource-intensive and environmentally-damaging industrial supply chains may well prove to be a great asset in the near future. Indeed, the worth of this is already being proven through the work of charitable foundations like World Medicine, who have set up successful CMACs in poor, rural areas of India, Palestine, Nepal and Sri Lanka.', u'entity_id': 549, u'annotation_id': 11240, u'tag_id': 1774, u'entity_type': u'post'}, {u'quote': u'The importance to look at the students as men and women having resources, abilities and strength enhance equal relationships.', u'entity_id': 828, u'annotation_id': 11249, u'tag_id': 1775, u'entity_type': u'post'}, {u'quote': u"Doucheflux helps them to get more self-esteem, but it is difficult because sometimes it feel that we are infantilizing them, and if you do that mistake they don't come anymore", u'entity_id': 541, u'annotation_id': 11248, u'tag_id': 1775, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 727, u'annotation_id': 11247, u'tag_id': 1775, u'entity_type': u'post'}, {u'quote': u"We (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out.\nHow is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men.\n\nRight now, we're in contact with a group of Syrians, around 25-32 of age, who have given us insights on daily life in the camp but also daily life in Syria and we have spoken about the small moments that create the feeling of home.\n\nSince they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).\n\nSeeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools?\nBoredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better.\nAt this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.", u'entity_id': 26014, u'annotation_id': 11246, u'tag_id': 1775, u'entity_type': u'comment'}, {u'quote': u'As time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, "belittled" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn\'t spend much time on this project so my answer to my question might sound cheesy.\xa0\xa0I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that\xa0time to work out.', u'entity_id': 23723, u'annotation_id': 11245, u'tag_id': 1775, u'entity_type': u'comment'}, {u'quote': u'But we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people.', u'entity_id': 20040, u'annotation_id': 11244, u'tag_id': 1775, u'entity_type': u'comment'}, {u'quote': u"You are \xa0a designer \u2013 you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some\xa0job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you'll find it!", u'entity_id': 15984, u'annotation_id': 11243, u'tag_id': 1775, u'entity_type': u'comment'}, {u'quote': u'If a refugee wishes for work, it almost automatically seems like a matter of impossibility: "We cannot even provide our own people with jobs, how do you think you would fit into that picture?" Maybe, that was a misunderstanding. Maybe, what was meant was rather: "I\'m tired of sitting around all day. I want to feel useful again. I don\'t want to be helped only. I also want to be in a position of helping others!"', u'entity_id': 665, u'annotation_id': 11242, u'tag_id': 1775, u'entity_type': u'post'}, {u'quote': u"You final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about.\nI frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn)\nCreating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.", u'entity_id': 22200, u'annotation_id': 11241, u'tag_id': 1775, u'entity_type': u'comment'}, {u'quote': u'I don\'t speak German so I used google translate to understand your post\xa0(English translation here). If I got it well, you have said wise words: we don\'t need to reach the care utopia with normalized approaches, but with trial and error. Are simulator workshops something to look into with more detail then? Any other tells or resources you know, do tell.\xa0that would be useful to OpenCare where we are supposed to look into promising ideas and prototype them - but prototyping in the "lab" so to speak could mean a due dilligence fail test (?) hm.', u'entity_id': 9977, u'annotation_id': 11254, u'tag_id': 1777, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 663, u'annotation_id': 13097, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u'Three issues discussed - platform documentation, trust, building the network\n\n\nThomas:', u'entity_id': 38856, u'annotation_id': 11879, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u'Delighted to find that you @Gehan have read and appreciated "A Hidden Wholeness" too! I would add my strong recommendation', u'entity_id': 17038, u'annotation_id': 11271, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u'These are two vital questions for me and why I\'m\xa0"Creating new realities". There\'s this beautiful play between the physical world and the non-physical (spiritual), which goes beyond words and at the same time can be very simple in heart. In my experience we are learning to trust and act upon our hearts\' desires and letting go of the certainties of the known. Learning to be fully into life and at the same time peacefully creating the life that\'s feels really good, often being unpredictable, confronting with new challenges along the way of growth. Yet, totally clear from another perspective, which is often only afterwards understood.', u'entity_id': 846, u'annotation_id': 11270, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u'I agree with Alberto, epsecially in terms of having low risk starting points. \xa0Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only "let someone in" after they have demonstrated in some way their worthiness.', u'entity_id': 11618, u'annotation_id': 11269, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u'I\'ve noticed, when discussing trust personally, that the meaning of trust is not as clear as it is sometimes assumed. To me there are levels of trust, that can be drawn out by asking questions like "would you trust this person to..." You can sort these questions by asking a bunch of them together about the same person. "... take a letter to the post office"; "... keep my house keys for emergency use"; "... look after my child when I\'m away" (and what age of child?) "... not to trick me or take advantage" -- all these (and many more) might have different sets of people who I would trust in that way.\nFor me, it\'s about having reasonable confidence that they would act in specific situations in a way similar to the way I would. Normally we get this only through personal experience. But if we documented trust more, we might be able to trust people based on the recommendations of other people we trust, for instance.\nMaybe worth exploring?', u'entity_id': 16945, u'annotation_id': 11268, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u'My take on this is: you create trust by collaborating, not the other way around. Collaboration comes first.\nThe trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.', u'entity_id': 9116, u'annotation_id': 11267, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u"SIDENOTE 2: Alkasem was again the most disruptive thinker in the group and gave us a lot to think. For him, everything moves around friendship. He has the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust.\xa0And without trust no skill can be shared. This intervention of him started a discussion about the meaning of trust and how we can build that.\n\u201c\u2018Trust is an enabler to use the resources.\xa0How can that be created inside an eclectic group like this?\u2019,asked Yannick.\xa0 For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.\xa0\nWinnie reacted that your own people's trust is a constant, but gaining the network's trust is more difficult.\nWith the help of Nadia we\xa0made a synthesis of the discussion\n1) Working trust is very different from social trust; and there needs to be a boundary.\xa0\n2) What also worked for her is deciding to work on even a small project.\n3) A story that binds us together - understanding how our different activities are related\n4) Documentation: what does it mean? for us it has been in writing.\nFinding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow.\n\nWhen the discussion was coming to an end we all felt we had got a lot of information and the workshop was going to close. So Nadia came up with a good idea to end the workshop with something concrete. We all felt that one of the biggest issues in care is that we live to much on our own island and that if we want to make care better we need to share and collaborate. But to collaborate we need to create trust. So this exercise was given to every participant and will hopefully end up in solidifying the care network in Belgium. The following question was asked:\nWhat can i bring to another organization, that also better myself as a person and is easily realizable?\nThis question will be asked again at the next meeting we are organizing. If you want to join, fill in the framadate and put your contacts in comment. We will update this discussion at that point and see how we have concretized the thrust issue.\n\nhttps://framadate.org/gWB9QN65MCyedmrL", u'entity_id': 788, u'annotation_id': 11266, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u'@WinniePoncelet this is certainly not an easy task, especially when the effort is being made on a global scale and you are trying to create change in a global scale. But we hope that cooperation can help with all the progress. The biggest challenge I see is trust and empowerment, people to trust each other and believe that collectively they can change things. So trust to each other and trust to collective power, rather than being disconnected and antagonistic. From so many sides we are being trained to not trust each other and our collective power, but I believe that culture is gradually changing and people are becoming more inclined to create communities and cooperate. Technology and to a certain extent the economic crisis have supported that.', u'entity_id': 24572, u'annotation_id': 11265, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u"Finding each other strengths and weaknesses by organizing small events with each other, and beginning with things that don't have something big at stake. Because then we can learn about each other. The importance of documentation in building trust: Leaving a story behind that people can follow.", u'entity_id': 541, u'annotation_id': 11264, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u'\u2018Trust is an enabler to use the resources.\xa0How can that be created inside an eclectic group like this?\u2019,asked Yannick.\xa0 For Claire it is a text and rules of engagement and a clear path of conflict resolution, and a way to learn to treat each other better.', u'entity_id': 541, u'annotation_id': 11263, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u'2.\xa0\xa0\xa0\xa0How do we create trust between unbeknown organizations that share the same way of thinking?\n\nWe had a great test case: around 15 organizations that came together for the first time, all sharing the same ideas and willing to collaborate to learn from each other. After a lot of discussions we discovered trust was the main issue.\xa0 So we tried to frame how trust is built and concluded that we needed to start with small projects with each other, these projects don\u2019t need to be longer\xa0 than a couple of minutes/hours, this way people start to bond. After that each following project can become more complex to create a stronger bodn between the participants. \xa0We listed a couple of thing each would do, to immidiate have a Proof Of Concept.', u'entity_id': 541, u'annotation_id': 11262, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u"How can we create a better health system if we need all kind of difficult systems to create the trust that isn\u2019t there really?\nWow, @Alkasem , this is a\xa0really interesting take on things. I agree 100% with you on this.\xa0\nI never lived in the Middle East, so I do not have your experience. But it doesn't look like the West lacks trust. All our societies run on trust; and normally such trust is rewarded, because we are rule-abiders: we stand in queues, show up for work and at school (resaonably)\xa0on time, and do not really cheat. Cheating is quite rare.\nSo: can you say more about the lack of trust you see? What is it that is done differently in Syria?", u'entity_id': 7704, u'annotation_id': 11261, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u'Everything moves around friendship. I have the feeling that a lot of people in western society start of with mistrust. If you start with mistrust it is difficult to create trust.\xa0And without trust no skill can be shared. How can we create a better health system if we need all kind of difficult systems to create the trust that isn\u2019t there really.', u'entity_id': 790, u'annotation_id': 11260, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u"While building trust in the service while ofering affordability and humane treatment\xa0is definitely a plus, the questions remains and it's for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available? We have great insights, yet risk running completely unprotected. The more they grow effective or meet a growing demand, the more attention they draw, the more concurential they become, the more they risk being antagonised by systems on more-or-less valid concerns. Uber\xa0being exhibit A..", u'entity_id': 18617, u'annotation_id': 11259, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u"It's also made it far easier to get 'buy-in' from the community so that they think of it as something that belongs to them, that they can collaborate with. The terms of interaction defined by our habits of commercial consumption go deep, and having some way to differentiate yourself from it seems very important in encouraging people to thnk and act differently.", u'entity_id': 18202, u'annotation_id': 11258, u'tag_id': 1778, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 533, u'annotation_id': 11257, u'tag_id': 1778, u'entity_type': u'post'}, {u'quote': u'Also interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted).\xa0I think that might be a western thing, linked to what\xa0surfaced in the discussions with @alkasem23 about differences in care with Syria:\xa0in the west we put our trust in and rely on systems rather than other people. In some\xa0other cultures,\xa0people probably put their belief mainly in a person, the doctor.', u'entity_id': 18779, u'annotation_id': 11272, u'tag_id': 1779, u'entity_type': u'comment'}, {u'quote': u'The basic thing we started with\xa0was an allegiance to the truth. \xa0Not in a religious sense per se (as in "I am the Truth, the Way, etc"), but just that every person was going to try to be as truthful as possible with themselves and everyone around them.', u'entity_id': 15392, u'annotation_id': 11277, u'tag_id': 1781, u'entity_type': u'comment'}, {u'quote': u'Gilles: Strongly believes in open source and data sharing solutions - everyone is looking for someone who can help them with a solution eg. to develop a website to help the project moving.', u'entity_id': 541, u'annotation_id': 11280, u'tag_id': 1783, u'entity_type': u'post'}, {u'quote': u'Adeline: Everybody here came with a need, to find ways to come up with a solution, tous le monde est venue avec un besoin, elle esp\xe8re aider \xe0 trouver une solution.', u'entity_id': 541, u'annotation_id': 11279, u'tag_id': 1783, u'entity_type': u'post'}, {u'quote': u'How to do skills mapping in  a way that is not anxiety inducing? Also: how do we channel our efforts in a way that is conducive to building something (we now call it the OpenVillage), and not let the momentum go, build something out of looking in the same direction?\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentskills mapping\n\n  \n    \n      Cancel\nSave', u'entity_id': 38811, u'annotation_id': 11758, u'tag_id': 1784, u'entity_type': u'post'}, {u'quote': u'My takehome is about the footprints of what we do. Alberto\u2019s Kathmandu example is that his project did not clean up the rivers, but it did increase the awareness that the rivers are polluted. John\u2019s clinic is up and running, so that\u2019s a fantastic footprint.\n\n\nHenry:', u'entity_id': 38811, u'annotation_id': 11748, u'tag_id': 1784, u'entity_type': u'post'}, {u'quote': u'My takehome points: (1) it is important to find likeminded people to share dreams with, but (2) it is frustrating when that does not go anywhere concrete. It would be great to have some kind of information about people\u2019s skills.\n\n\n\nhazem:', u'entity_id': 38811, u'annotation_id': 11746, u'tag_id': 1784, u'entity_type': u'post'}, {u'quote': u'Only after some months I came back to check the post and i found that someone ( @Rune ) replied with a comment. So, I got in touch with Rune and planned to meet at Master of Networks that took place at WeMake in Milan.\nWe could discuss for long and shared many points of view.\nSince then we have been talking about a common little project and how to realize the shared idea of open care to involve and empower patients. We even agreed on writing a academic paper together.\n\xa0\nThanks to the digital ethnography the first results of the network analysis were the metrics about involvement of users. Opencare staff users were the most present and with a higher number of posts and comments.\nThe most active two persons on opencare infrastructures, but not from the staff, were @Federico Monaco (ranks 7th by in-degree) and @Rune (ranks 13th) (for further information check: https://edgeryders.eu/en/opencare-research/the-wonder-of-open-notebook-science-opencare).', u'entity_id': 862, u'annotation_id': 11281, u'tag_id': 1784, u'entity_type': u'post'}, {u'quote': u'Most researchers are not "market-savvy". Most of the times they think that, since a technology exists, the problem is solved. But nothing is farther than the truth! Turning a technology into a product that solves a problem,and creating a supporting community is an exciting but difficult venture!', u'entity_id': 11657, u'annotation_id': 13098, u'tag_id': 2231, u'entity_type': u'comment'}, {u'quote': u'Aside from the perspective we teach, relevance is important as well. I hated biology in high school. If you had told me I\u2019d be a bioengineer someday, I would have laughed in disbelief. The content of biology class often remains descriptive (you\xa0learn about the parts of a plant cell), while higher education and jobs are all about application (you use these plant cells to grow something useful, like a building). A child that likes\xa0engineering, design and coding should consider\xa0studying biology. This is fundamental if we want enough people to develop sustainable technologies for the future.', u'entity_id': 530, u'annotation_id': 11284, u'tag_id': 2231, u'entity_type': u'post'}, {u'quote': u'He could not take it any longer. So, he and his cordial friend Vassilis (Salapatas) decided to bridge this gap between research and society. In 2012 they formed SciFY (Science For You), an Not for profit organization that does exactly this: take scientific results, and then form a community of entrepreneurs, volunteers, researchers and end users to build useful final products to solve everyday problems. And they offer them for free. To all.', u'entity_id': 528, u'annotation_id': 11283, u'tag_id': 2231, u'entity_type': u'post'}, {u'quote': u'Please, don\u2019t get me wrong. The research contribute with important results, but obviously there is a problem of transferring the research results into the benefit of people with physical challenges.', u'entity_id': 516, u'annotation_id': 11282, u'tag_id': 2231, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 13099, u'tag_id': 1786, u'entity_type': u'post'}, {u'quote': u'One of the reasons why I decided to try Trauma Tour is my exchange with a patient over Twitter. We\u2019ve been talking online for a very long time about her experience, as she cannot come and see me in Belgium. And then I thought, I should be able to go and see her.', u'entity_id': 740, u'annotation_id': 11285, u'tag_id': 1786, u'entity_type': u'post'}, {u'quote': u'This is how our mission came about. We plan to develop the very first Open Source, affordable ultrasound probe (echo-stethoscope) dedicated to diagnosis orientation, based on open source hardware and software principles.', u'entity_id': 732, u'annotation_id': 11290, u'tag_id': 1788, u'entity_type': u'post'}, {u'quote': u'Ability to learn about and experiment with novel or unconventional approaches towards tackling root causes of problems which affect both newcomers and the host communities which welcome them.', u'entity_id': 5234, u'annotation_id': 11291, u'tag_id': 1789, u'entity_type': u'post'}, {u'quote': u'Caring with science\nMore fundamentally, care is everyone\u2019s responsibility in one way or another. Earlier this week, one of our team members went to visit an institute that accompanies people with a mental disability. He visited them to explain what we do and to offer them biology workshops for their audience, the responsible\u2019s jaw dropped as she launched off in enthusiasm, pointing out all the ways we could cooperate. She said nobody ever thought of deeming their people worthy of science oriented workshops. Even if it\u2019s just for entertainment, science or technology can be used for care. People have a tendency to underestimate capabilities of certain groups, like little kids or special needs people. On the other hand, there\u2019s a tendency to overestimate the intelligence required to grasp or play with basic principles. The power lies in how it\u2019s communicated.\nThis is only one of plenty of groups that don\u2019t get equal chances for quality education. It is part of the mission of Ecoli to provide those groups the opportunity to learn and discover.', u'entity_id': 530, u'annotation_id': 11292, u'tag_id': 1790, u'entity_type': u'post'}, {u'quote': u'Our goal is that participants can use the informational aspect to understand their disease process, find resources of different modalities, and either receive aid in navigating the health systems in place or find treatment within the space itself.', u'entity_id': 521, u'annotation_id': 11293, u'tag_id': 1791, u'entity_type': u'post'}, {u'quote': u'Surely, the day after was going to be a nightmare. Inexperienced volunteers struggled to adequately classify, pack and distribute huge amounts of donations. Very often the same material had to be sorted again and again for multiple times. The inadequate coordination among government authorities, NGOs, solidarity groups and other stakeholders in combination with the anxiety of refugees led to a disappointing result. Large amounts of food, clothing, medicines and a lot of useless things (that could be a separate funny story), were being carried around Greece like a giant pinball machine. Unnecessary shipments, aid wasted, corrupted by mold, insects or still remain in inappropriate warehouses. A serious waste of resources.', u'entity_id': 550, u'annotation_id': 11295, u'tag_id': 1792, u'entity_type': u'post'}, {u'quote': u"For a while we were disheartened to see people we\u2019d worked with on issues of addiction appear back at our doors. What were we doing wrong? We were adamant that we did not want to be another revolving door for people stuck in the cogs of a poverty industry or disease factory. Slowly we realised - by classical 'analysing our own reality' - that the systems and relationships beyond our doors and beyond our direct influence were considerably more effective at creating disease and dysfunction than we could ever be at resolving it - especially on grant funded (frequently cut) project work, creating environments where people could find greater health and humanity. And now we know the imperative of both - to be there when people need us on the renewed understanding that many diseases and social ills are adaptations to the dysfunction in our wider systems. On its own, this would amount to little more than sticking a finger in a crack in the harbour wall in the face of a tsunami. So now we understand that working to influence system change is also essential to not only the health in individuals but increasingly the survival of our communities. I find what Deborah Frieze refers to as\xa0'hospicing the\xa0dying' in relation to systems\xa0helpful - an important aspect of care work in our times. What is called for as old systems collapse? How do we work to illuminate and support the emergence of the new?", u'entity_id': 13972, u'annotation_id': 11296, u'tag_id': 1793, u'entity_type': u'comment'}, {u'quote': u"One would think, but in my view, that would have complicated things too much for the huge numbers of people who need everything in the public sphere dumbed down so they can grasp it. \xa0(I hate to say such things because it sounds so elitist, but after decades of involvement with the public dialogue I can't avoid that conclusion.)", u'entity_id': 30781, u'annotation_id': 11297, u'tag_id': 1794, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22821, u'annotation_id': 11300, u'tag_id': 1795, u'entity_type': u'comment'}, {u'quote': u"t's a harsh truth that there is no cookie cutter strategy, that everyone has to go through their own process, solve their own puzzle. Although this process is different for everyone, for each part of it there are similarities with someone, somewhere. To me it appears that a big part of the search is identifying pieces of your puzzle\xa0in other people (eg. some advice)\xa0and testing if it gets you closer to finishing your puzzle. That's where community comes in handy: a large group of people equals a lot of potentially useful pieces. The analogy is a simplification, but it helps me make sense of it.", u'entity_id': 22611, u'annotation_id': 11299, u'tag_id': 1795, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 22093, u'annotation_id': 11298, u'tag_id': 1795, u'entity_type': u'comment'}, {u'quote': u'Alternatively, try exploring questions which mean a lot to almost everyone. See e.g. https://www.indy100.com/article/the-36-questions-to-ask-that-will-make-anyone-fall-in-love-with-you--gJVkNnfRcg', u'entity_id': 26013, u'annotation_id': 11301, u'tag_id': 1796, u'entity_type': u'comment'}, {u'quote': u"In addition to possible support from OpenCare\xa0(for which we are just now drafting terms with Marco)\xa0you might want to look into a uni partner that would be willing to assign students to work for it and make it part of a semester assignment, that should really help kickstart. \xa0Of course, this may be too advanced stuff for coursework, I have no idea.\xa0\nWhat's a good timeline? Is it reasonable to expect advances in 6 months? They can\xa0be, if not research results, community mobilization results, contributing to global documentation and similar things. Well done!", u'entity_id': 25463, u'annotation_id': 11306, u'tag_id': 1797, u'entity_type': u'comment'}, {u'quote': u'Thank you for your comment @Noemi\nI\'m not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see..\nUnfortunately the\xa0 community interactions are the goal and not the mean. I\'m doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus.\nThe idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I\'d love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.\xa0 What about starting in June talking about "e-patients and EHMs"? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist', u'entity_id': 11219, u'annotation_id': 11305, u'tag_id': 1797, u'entity_type': u'comment'}, {u'quote': u"I was reading this article and thought you might find it informative - results from a study on Irish students from 22 universities saying that a third go through mental distress and less than 1 in 4 look for support. So worrying. I'm now trying to get hold of the original study.\nA mental health community initiative in Ireland that we know of is\xa0Cosain\xa0- a an organic healing centre by peers of all ages,\xa0running as a prototype\xa0in the city museum! - curious what you think.\nAlso new in the conversation since you were last online - a volunteer led organisation running twitter chats on mental health. Definitely check them out, maybe you can do something together as they are always looking for hosts!", u'entity_id': 27808, u'annotation_id': 11304, u'tag_id': 1797, u'entity_type': u'comment'}, {u'quote': u'I was doing a little research the other day into this group called WeCommunities \xa0for health professionals - they organise dedicated regular twitter\xa0chats\xa0and \xa0a recent one\xa0was "What is it like being a student mental health nurse?" They have it all archived should you want to have a look. I myself need to learn more about how it works, but it seems like there is a need for coping and sharing lessons as a professional too.', u'entity_id': 7096, u'annotation_id': 11303, u'tag_id': 1797, u'entity_type': u'comment'}, {u'quote': u'I am a member of the Inaugural Class of Minerva Schools at K.G.I., as well as Minerva\u2019s, Mental Health Services Programs Coordinator for Berlin and Buenos Aries. Which sounds great, but seriously, what the heck does that even mean?\nMinerva is a new university that aims to reimagine the paradigm of higher education, based on the science of learning. All classes are seminars, with a flipped classroom structure. Meaning that we students, learn the content on our own and spend time engaging with the deeper concepts behind the material. Moving the emphasis away from the professor teaching and instead towards students learning.\nAll of this is facilitated by Minerva\u2019s online platform where all classes take place. Every student (no more than 20 per class) webcams into class, where the platform allows our professors to more easily check how much everyone is participating in the discussion, send us into breakout groups, and live poll the class. Beyond being of instructional benefit, the online format takes away much of the typical costs of facilities development and maintenance that traditional universities place upon their students. Additionally, it allows Minerva to be a genuinely international experience. Our student body is comprised of students from over 40 countries. We live and travel together to seven cities (in as many countries) in cohorts no greater than 150 students. \xa0\nThis unique structure has brought together an amazing community, with potential for changing many of the ways we view higher education. However, there is one factor of higher education that I work most with, and that is students\u2019 mental health and wellness! Minerva students\u2019 have necessarily high work loads, a variety of cultures and constantly transitioning lifestyles, which makes it the perfect edge case to gain insights on how to improve mental health care in universities.\nAccessibility of Resources:\nIn the U.S., a 2014 study found that the average ratio of university mental health professionals to students is about 1:2080. This means that students in need of counseling services face long wait lists and a low amount sessions, resulting in care that is often literally too little too late.\n\nThis has a simple fix: dedicate resources so that students who seek help can get it! The real challenge comes in getting students to value their own well being and to reach out when they feel they need mental support. 80% of students who commit suicide (the second leading cause of university student death) never come into contact with any staff from the counseling center. How do we address these issues?\nThe answer is Cultivating Care through Community!\nThis is where my work comes in. As a student working on the school\u2019s mental health team I get work on changes that try and address mental health before it becomes an impediment to education. Currently, I am working on a training for students to learn how to better manage their self care and stress management. Additionally, we are adapting trainings from other universities to include aspects from the science of learning, and create a more lasting impact. A prime example of this is the Student Support Network Training (originally developed at Worcester Polytechnic Institute), where students are nominated by their peers to learn how to better understand their own mental health, as well as support friends by caring for them in crisis and connecting to the resource they need.\nIn addition, it\u2019s no longer enough to focus solely on the counseling department\u2019s efforts to improve students wellness. Our academic team offers periodic sessions with deans and professors to help students improve their writing, time management and other skills that can lead to increased stressed when not appropriately addressed.\nThe Student Experience Team has created a series of traditions that brings the student body together as well, to fight the isolation that can commonly occur when students transition into college. Every monday evening a different student takes a leap of faith and give their \u201cMinerva Talk\u201d, by sharing the story of their life so far. On Wednesdays students gather in small groups for Supper Clubs where they all bring some food to share as they explore questions that push them to be vulnerable.\n\xa0\nWhile we still working on figuring out a lot of how we address student well being (and build this university) it\u2019s become clear that the future of student care must be holistic and not just reactive.\n\xa0\nI\u2019m curious to hear your thoughts and also what you are working on! Please connect with me or comment below.', u'entity_id': 724, u'annotation_id': 11302, u'tag_id': 1797, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14908, u'annotation_id': 11309, u'tag_id': 1798, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 833, u'annotation_id': 11308, u'tag_id': 1798, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 27829, u'annotation_id': 11307, u'tag_id': 1798, u'entity_type': u'comment'}, {u'quote': u'Keeping momentum, we tested unMonastery/Monastery in early December, 2017. 4 days at Cregg Castle, PreMonastery; a Rural Reconnaissance. A range of skilled individuals involved with a range community groups and initiatives, and collaboration with @Nadia (EdgeRyders LBG). We\u2019ve just submitted our report to Galway 2020. Many outcomes during and after the event including the adding of stories to Opencare.', u'entity_id': 812, u'annotation_id': 11310, u'tag_id': 2606, u'entity_type': u'post'}, {u'quote': u'unMonastery Matera', u'entity_id': 6272, u'annotation_id': 12505, u'tag_id': 2622, u'entity_type': u'post'}, {u'quote': u'On the other side,\xa0unpaid care\xa0work it\'s somehting many of us do in our lives - out of love, pleasure, even a sense of\xa0duty as Alex pointed out in his story of refugee\xa0volunteering. For a lot of people care - and I\'ve seen older generation women in my family, care is indeed something they "can\'t switch off" from because it is where they find meaning in their lives.\xa0After retiring, they, and not their husbands were the ones who were able to take on paid care roles (eg caring for small children) as those skills remain valued at an old age. Indeed underpaid, and yet the only surplus income in the family.', u'entity_id': 17209, u'annotation_id': 11311, u'tag_id': 1800, u'entity_type': u'comment'}, {u'quote': u"I realise it's a lot to expect though, I imagine\xa0coping\xa0with an unpredictable\xa0situation already takes a lot of effort.", u'entity_id': 14969, u'annotation_id': 11312, u'tag_id': 1801, u'entity_type': u'comment'}, {u'quote': u'Galway City Community Network (CCCN) - they tried to influence the council. Galway got a Greenleaf award - there were events promised, funding,... and nothing happened. Currently all the environmental groups are putting pressure for something to actually happen, by going international: \u201cBecause we\u2019re officially registered we wrote to the Council through Galway\u2019s CCCN. The next stage is to go directly to the Greenleaf in Europe\u201d.', u'entity_id': 6415, u'annotation_id': 11313, u'tag_id': 1802, u'entity_type': u'post'}, {u'quote': u'In Africa, the maker movement and biohacking is facing many difficulties: 1) the vision differs fundamentally from the usual makers/biohackers. When I ask Western biohackers \u201cwhy do you make this?\u201d, it\u2019s usually just for fun, like a hobby. In Africa, it is not the same, geeks are hacking to solve a problem, and to help people. 2) the machines that are usually made, are not prototyped in an African context. Although there are exceptions, often they are not useable. Therefore I promote biohacking in Africa in collaboration with electrotechnicians etc., so things can be tested and used. 3) The basic electronic components which are not easily affordable and available in Africa. Even the raspberry pi and Arduino are not easy to get; you have to order it from China.  4) The capitalistic system is another hurdle, because even if the prototype is good, there is standards defined by the WHO so that prototypes or materials to be used in hospitals, should fit with a standard. These standards are defined by the big companies. You cannot, as a biohacker, fight the establishment. They define the standard. This critique is addressed to the system managing health: it does not let people do it themselves. 5) Biohacking is not completely new to Africa, but it remains not supported by African Governments. People behind the project suffered a lot eg. The geek who made a cardiopad, was supported only when the state saw that media everywhere in the world, talk about this cardiopad invention (CNN, BBC, ...).', u'entity_id': 37182, u'annotation_id': 11773, u'tag_id': 1923, u'entity_type': u'post'}, {u'quote': u'So, I and my wife Lisa started "Makers" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that\'s completely self-sustaining. Our logic is that, in these increasingly reactionary times, public money will not be available to help localities, so we\'ll need to make sure that what we do works on a completely commercial basis. This means that job number one is to SELL! Every other objective can only be realised after we understand exactly how to relocalise manufacture SUSTAINABLY.', u'entity_id': 14151, u'annotation_id': 11314, u'tag_id': 1803, u'entity_type': u'comment'}, {u'quote': u"Being outside the city walls, the Liberties became a hub for trade and craftsmen. The 19th century saw the Liberties become dominated by large brewing and distilling families, most notably Guinness who built the world's largest brewery there. With this industrial wealth, however, came dire poverty and slum living conditions. Today the Liberties\xa0is a city neighbourhood of opportunities and innovation, but its history -\xa0positive and negative -\xa0pervades. Although having undergone much urban regeneration as well as gentrification,\xa0the Liberties still embodies that juncture between being a centre for enterprise and commercial life as well as being home to large blocks of inner city social housing. Homelessness, drug use, and lower than average life expectancy are some of the problems facing\xa0in the Liberties today.", u'entity_id': 841, u'annotation_id': 11317, u'tag_id': 1804, u'entity_type': u'post'}, {u'quote': u'FACT 2: Bovisa is undefined.\nIn the past, it was an industrial powerhouse. Today it\u2019s something different, difficult to define.\nIt lacks the identity that other areas have successfully established,\xa0\nwhich also reflects on the feelings that people share towards their place.\nFor that reason, we believe that Bovisa needs to state new, authentic values\xa0\nto make its way to the minds and hearts of people.', u'entity_id': 26067, u'annotation_id': 11316, u'tag_id': 1804, u'entity_type': u'comment'}, {u'quote': u'This process exacerbates in those areas of the city that suffer sudden transformations and even more where a large chunk of the city change its function.\nThis was the case of Bovisa district in Milan that undergone a dramatic change in the 90s\u2019 when the dismissed industrial area (Ex-gasometri) left place to the current Bovisa Politecnico University. In the words of one of the professor at Politecnico \u201cit\u2019s like if a massive alien spacecraft has unexpectedly landed\u201d.\nThis is considered a general upgrading of the district but no doubt resulted in a subsequent change in the social life.', u'entity_id': 832, u'annotation_id': 11315, u'tag_id': 1804, u'entity_type': u'post'}, {u'quote': u'Something in your project reminds me of a different project we are working on at Edgeryders. It\'s called Future Makers, and it\'s about DIY urbanism. Not so much city\xa0planning\xa0as city\xa0making, directly. It happens in three cities: Yerevan, Armenia; Rustavi, Georgia; and Luxor, Egypt, under the aegis of the United Nations Development Programme. Working with UNDP, we have noticed that there are groups of people who are trying to "edit"\xa0the city as if it were a wiki, without necessarily going through all the mandated procedure. Some of the "edits" are good, great in fact: look at this Cairo neighborhood were people got out with\xa0bulldozers\xa0and build four new ramps to access the ring road!', u'entity_id': 29087, u'annotation_id': 11320, u'tag_id': 1805, u'entity_type': u'comment'}, {u'quote': u'\u201cLocal authorities are no longer perceived as the only party expected to solve complex issues in cities\u201d (source)\nThis post follows a conversation between Pieter Deschamps (www.labvantroje.be/en) and @Noemi and aims to provide ideas about effective urban mobilization and partnership building between cities and citizens.\nLiving Streets is a project in Ghent, Belgium, where neighbors collaborate to temporarily redesign their streets for a couple of months, when neighborhood parking areas are marked down away from the street. You would see safe playgrounds built, or new green meeting spaces, or social, communal activities. A flagship project of the Trojan Lab non-profit, it went on for 4 years now, involving more than 25 streets, but as an experiment, it also had an expiration date: the end of 2017. An experiment as it was, its eyes were always on the prize: exploring a new approach of public space, finding alternatives for street parking and reworking people\u2019s relationship with city officials.', u'entity_id': 33746, u'annotation_id': 11319, u'tag_id': 1805, u'entity_type': u'post'}, {u'quote': u'In cooperation with local institutions, with universities and international partners, the Prinzessinnengarten became a laboratory for resilient forms of urban development. In a pragmatic manner, we have been asking questions on how to deal with urgent issues such as climate change, dwindling resources, food sovereignty and the loss of biodiversity. The answers being experienced and experimented on all strive toward the creation of a resilient city, not only taking global challenges such as climate change into consideration\xa0but also incorporating local actors in the building of practical and local solutions.', u'entity_id': 507, u'annotation_id': 11318, u'tag_id': 1805, u'entity_type': u'post'}, {u'quote': u'a look into peri-urban gardening in terms of autonomy and', u'entity_id': 560, u'annotation_id': 11325, u'tag_id': 2671, u'entity_type': u'post'}, {u'quote': u'At Moritzplatz, a busy roundabout in the center of bustling Berlin-Kreuzberg, well over a thousand supporters have helped the site to grow, turning a lot that was vacant for 60 years into a flourishing garden. Without specific expertise, with little money and motivated by the idea of a communally used garden in the center of the city, we began in summer 2009 to put down the first roots of a flourishing garden between cement and rubble. By now, a huge diversity of plants is growing here as well as a diversity of social relations. People of different origins and of different ages meet and exchange their knowledge and their experience', u'entity_id': 507, u'annotation_id': 11324, u'tag_id': 2671, u'entity_type': u'post'}, {u'quote': u'The openrampette team worked for weeks in order to plan and deliver a well balanced session that included hard design needs by a user research approach and an easy, neat approach meant for anyone.', u'entity_id': 850, u'annotation_id': 11336, u'tag_id': 1811, u'entity_type': u'post'}, {u'quote': u"As first mission Lorenzo will be in charge of the \u201ccall\u201d part of openrampette; i.e. the device, or the solution meant to call the shop attendants. The result should be a \u201cgood\u201d mock-up to be discussed on in the next meeting of \u201cuser research\u201d with the shop owners themselves. The design side is improving now that the projects have been developed and could involve and motivate many people. It's the turning point from design thinking to the making.", u'entity_id': 852, u'annotation_id': 11335, u'tag_id': 1811, u'entity_type': u'post'}, {u'quote': u'Pauline and I are both product design students and together with Nele and Luisa who study communications we are team UP. In the context of "Hacking Utopia", a human centered design project at the University of Arts Berlin, we are investigating mental health. This article explains our approach of boosting mental resilience and give you the chance to get involved in our project.', u'entity_id': 511, u'annotation_id': 11334, u'tag_id': 1811, u'entity_type': u'post'}, {u'quote': u'From Maison Du People to Huis VDH, a story about citizen centred design.\nSince I was a guide and learned about the architect Horta and his Art Nouveau Style, I\u2019m fascinated with the Maison Du Peuple, a building from the end of the 19th century that housed all kind of projects and people wanting to better society. It was a place where ideals could grow, and people could come listen to each other in an open dialogue. I started working on an open call to repurpose the empty Bourse building into a new Maison Du Peuple, right in the hearth of the city. But just days after finishing the text the attacks in Bataclan occurred and life in Brussels changed dramatically for a couple of weeks\u2026\nI gave it a rest and set my focus on a vacant building above the well-known music bar Bonnefooi: 4 floors, 500m2, and lots of potential, but also lots of work to be done. Without any budget or action plan, I started gathering people in the house, now called Huis VDH. The only thing I knew was that I wanted an inclusive project build from a common idea: Designing a semi-public space in such a way that the wellbeing of the neighbourhood / city improves. Huis VDH will therefore become a test case, because it isn\u2019t the first or last vacant space above a shop in Brussels: there are more than 23 000 m2 documented.\nSo there we were, having a space, an open concept and a lot of potential. The first thing we did was taking time to create a common practice: we designed our way of gathering through a futurism session created by Fo.AM that allowed us to gather all ideas from each person who wanted to get involved and, like a funnel, filter only the most common. For us, it was important to make Huis VDH as open as possible, so that any new member with the right mind-set could easily become a full involved partner in the building process. After a philosophical six months, we had the sprout of an idea: Huis VDH was born.\nIt\u2019s all in the name, for Huis VDH it is no other. \u2018Huis\u2019 means \u2018home\u2019 in Dutch and that is what we are aiming to become for people that are drowning in a sea of complexity of city life. We try to not judge each other, but rather think solution oriented: Help out where we can, and bring the right people around the table. Our space is designed to welcome each kind of small organization working on local issues: cultural, social or technological. We try to design each space so it can be multifunctional and become a temporary rest spot for thosein search of an anchor. We believe like edgeryders: \u201c that the power of a community is bigger than the sum of all parts.\u201d\nOne big challenge we will be facing in the next couple of years is to use our talent to organize ourselves within crisis. Big problems are ahead and we need to build up resilience to react quickly to an ever changing surrounding. Huis VDH is trying to take that challenge inside our own development. For us resilience can be developed on four levels: knowledge, vulnerability, out of the box exercise, and modification.', u'entity_id': 520, u'annotation_id': 11333, u'tag_id': 1811, u'entity_type': u'post'}, {u'quote': u"I think the key here is not to let one giant to emerge, but to allow organic replicas to provide similar offers in their environments, without overarching the whole globe with a great huge fix. If the efforts remain decentralized, scattered, but also adapted to local needs and problems, I can't see a way in which this model would be bad (of course. pharmaceutical companies and other parties interested in ridiculing anything's that out of the system will try to fight it and there will be a need of great success stories that can be told to the people in order to change their attitudes towards alternative approaches to care. Maybe it's not even too late, herbal medicine didn't completely disappear...) or harmful. I believe there should be manuals and ways to ensure people providing help are capable of doing it, however, what kind of manuals and to what extent, I have yet no idea.", u'entity_id': 19048, u'annotation_id': 11332, u'tag_id': 1811, u'entity_type': u'comment'}, {u'quote': u'One of the challenges of alternative care provision is evolving tools that enable it around the needs of communities that use them, and support those who develop them.\xa0I had a conversation with Amir Hannan, a GP working in the UK, about how\xa0 chronic care requires patients to self-manage for good health outcomes (writeup coming soon). Over 15 years he has built a practice based website to encourage an support his patents gain a better understanding of their health to better enable automy and self-care. You can see the site itself here: www.htmc.co.uk (especially the "Common Problems you can solve yourself section - see menu on the left)"...', u'entity_id': 8632, u'annotation_id': 11331, u'tag_id': 1811, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 717, u'annotation_id': 11330, u'tag_id': 1811, u'entity_type': u'post'}, {u'quote': u'There\'s already people showing up with UI/UX skills. From a pm:\xa0"I was looking over that buoy app ux test video. Have y\'all been using it? I\'d like to talk to y\'all more about visual design for it. I mostly do digital/visual design in the fashion space, but I think my ui/ux could be helpful for this. Have you seen signal? That\'s friends of ours who developed and designed it; I think they did a really good job of user-accessibility though for a somewhat foreign concept of encryption, and have also been able to make a platform that can scale. Eitherway, we can talk more when you\'re in town. Hyped to hear more about edgeryders."Also a friend of mine working with infosec will be joining us.', u'entity_id': 29544, u'annotation_id': 11329, u'tag_id': 1811, u'entity_type': u'comment'}, {u'quote': u'Test something from users, learn how to identify their needs (because they do not always express them directly) and how to create something that satisfies their needs creating enough value for them to really use your product/service. Etc.', u'entity_id': 16291, u'annotation_id': 11328, u'tag_id': 1811, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 26064, u'annotation_id': 11327, u'tag_id': 1810, u'entity_type': u'comment'}, {u'quote': u"I would not want to dismiss methods from the past completely. Certainly many of them don't work very well, may be blindsided, or out of touch with realities. So I agree one should not accept them as last word on the issues (and note I may sound more drastic on this if I had seen official approach fail on the Greek Islands for months) - there sure is a necessity for trying out new things. Still official policies often have some useful elements to them (also depends on how far into the past one wants to look).", u'entity_id': 13506, u'annotation_id': 11341, u'tag_id': 1812, u'entity_type': u'comment'}, {u'quote': u'This idea has some difficulties about reversing technology which is already there (sound cancellat\u0131on). The way we wanted the prototype to work is that if we can use the existing technology of noise cancellation to design something that can be put on the baby in order to reduce their noise. We can further d\u0131scuss how we were proposing to use the noise cancellation technology here, but for now we have kept this project on hold.', u'entity_id': 10661, u'annotation_id': 11340, u'tag_id': 1812, u'entity_type': u'comment'}, {u'quote': u"Don't always start from the assumption that, because others complain about the regulations (often as a narrative to raise their prices), they are indeed an obstacle for you. Do your own due diligence, before thinking of how to work beyond (rather than around) them.", u'entity_id': 15136, u'annotation_id': 11339, u'tag_id': 1812, u'entity_type': u'comment'}, {u'quote': u'by how much, and what kind of, intersection your activities have with theirs', u'entity_id': 8137, u'annotation_id': 11338, u'tag_id': 1812, u'entity_type': u'comment'}, {u'quote': u'a public health infrastructure with clinics and hospitals.', u'entity_id': 521, u'annotation_id': 11337, u'tag_id': 1812, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 551, u'annotation_id': 11343, u'tag_id': 1813, u'entity_type': u'post'}, {u'quote': u'You could argument that everybody needs to do his part of preparation, and you can\u2019t only be the philosopher, but I lean to see a collective as an ecosystem where each other strengths are put up front and we organize ourselves around this.', u'entity_id': 785, u'annotation_id': 11342, u'tag_id': 1813, u'entity_type': u'post'}, {u'quote': u'Some interesting facts from his paper:\n-social housing in Bxl is much lower, 7 % compared to the 27% in the Netherlands\n-7 % of houses totally empty\n-1 000 000 sq metres of unused office space: 40% of empty offices have been empty for 7 years\nFrom squatting to a participatory process -\xa0 a public owned space (Community Francais) but community managed: from refugees to Irish artists to Flemish doctor students. Half the people (of 60) don\'t have any revenues, and everyone contributes a little - from 60 eur a month to approx. 150.\xa0\xa0In Belgium it is possible to have a temporary legal occupation for an office, so you can live in an office space!\nIt\'s an office building, which means people can change the layout easily. This makes it an interesting testcase for architects that are experimenting with commun space. The big difference between buildings for profit and the testcase of 123:\nProfit building is praised for being open while just having 7% of their space being used for community. 123 has almost 50% of community used space, but because of their \'illegal\' status it isn\'t praised.\xa0Loic showed a detailed distribution of the types of spaces - at each floor you\'d have facilities, workshops, library + distribution of private and communal space. \xa0Important detail: Stairs are used instead of working elevators as a social control mechanism.\xa0\nLoic is trying to give more visibility to housing solutions - it\'s not easy, he says, and it\'s important to make good contact with the owner! "First you squat, then you talk" is his moto. He wants to continue researching these kinds of houses. You can contact him through mail:\xa0loicdesiron@gmail.com', u'entity_id': 791, u'annotation_id': 11345, u'tag_id': 1815, u'entity_type': u'post'}, {u'quote': u'Hey @Alberto! Actually Malagasy government on something else. Since ever,the health department is on a vitamin A and mosquito net campaign, \xa0vaccination against poliomelite "weaknesses of ligaments" every year. And there is no update since 2006, The Malagasy Institute of statistics on deep water. Just for record, a doctor is caring a thousand people so 1/1000 people, we are estimated about 20 000 000 habitant.\nHere is a picture of a doctor make you know how it\'s look like on administration building for public health.', u'entity_id': 17289, u'annotation_id': 11346, u'tag_id': 1816, u'entity_type': u'comment'}, {u'quote': u'In my view, ML goes much beyond this kind of vision and the virtuous link between economic value and social impact is a very interesting and challenging aspect also for the local administration that looks at this case with much interest.', u'entity_id': 14528, u'annotation_id': 11358, u'tag_id': 1817, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 20113, u'annotation_id': 11357, u'tag_id': 1817, u'entity_type': u'comment'}, {u'quote': u"There are a lot of hybrid models that try to go in that direction but preserve some of the old stuff, and I think that is because people are not ready or can't go all the way. Within SENSORICA \xa0all projects are open, everyone can perform tasks, no barrier to value creation, and we use the value accounting system to redistribute the revenue. Networks that have projects formalized as a company, incubators and accelerators for example, don't have a lot of co-creation or exchanges between these entities. Within a value network projects are open and are only loosely formalized. If you have a system to track contributions you'll get a lot of value flows between projects, synergy increases, there is a lot of recycling and sharing of tangible and intangible resources.", u'entity_id': 19801, u'annotation_id': 11356, u'tag_id': 1817, u'entity_type': u'comment'}, {u'quote': u'First, what is the value system? We need to map it first and that will determine how to set everything up for value to be created, distributed and for the benefits to be shared among participants. Second, there is a choice to be made about the type of environment we want to', u'entity_id': 19801, u'annotation_id': 11355, u'tag_id': 1817, u'entity_type': u'comment'}, {u'quote': u'@Nadia "I am looking at collaborative ways of generating revenue\xa0for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It\'s tricky.\xa0"', u'entity_id': 19801, u'annotation_id': 11354, u'tag_id': 1817, u'entity_type': u'comment'}, {u'quote': u"I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here's where the course is being shaped, feel free to jump right in:\xa0https://edgeryders.eu/en/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course", u'entity_id': 16967, u'annotation_id': 11353, u'tag_id': 1817, u'entity_type': u'comment'}, {u'quote': u'As an incredibly diverse community, the range of experience and knowledge about building economically sustainability projects amongst members ranges from "where do I even begin" to "I just sold my 3rd company". Also, there are many different interpretations of "economic sustainability" and strategies for achieving it. Moneyless crowdfunding with Makerfox anyone?\nA recurring topic is one David De Ugarte dove into in this Las Indias\'s piece on generating revenue through sales. Especially in purpose/value driven contexts, this topic is often controversial and deeply unsettling: []\xa0our \u201cconscience\u201d and the \u201cprivate logic\u201d will join forces to tell us \u201cwe are not good at it\u201d, and that this \u201cit\u201d \u2013 selling \u2013 is very close to deceiving. But this is false.\xa0\nMost initiatives fail to generate monetary resources not because they don\u2019t manage to develop and deliver a product to the market; they fail because they develop and deliver an experience, service or product that no customers want or need enough to pay for. This is not magic though, it is something that you learn to do.\xa0\nMany of the projects we see popping up on Edgeryders, are collaborative and decentralised initiatives. Perhaps it makes sense to structure a process which everyone can participate in to build economic sustainability into projects in a decentralised way:\n\n\nIdentify and document our assumptions\n\n \n What are our assumptions/hypotheses about how we gratify our clients and or sponsors, who they are, how we will acquire and monetize them?\n  \n \n What are our assumptions/hypotheses about how we serve the needs of our constituency, who they are, as well as how we engage them into becoming more active participants in (and beneficiaries of) our initiatives?\n  \n\n\n\nTalk to prospective customers to validate (or invalidate) our assumptions\n\n \n What problems do they face? \xa0How do they solve them? \xa0What matters to them? \xa0What is a must-have for them?\n  \n\n\n\nIdentify the risk factors in the opportunity\n\n \n Are we facing significant technology risks? \xa0Or more of market risk? \xa0How can we test and validate these (starting with the most risky)? \xa0What market testable milestones can we build that would result in sufficient evidence to induce us to pivot or move forward? A proof of concept? A letter of intent? \xa0A prototype?\n  \n\n\n\nCreate and Test a Minimum Viable Offer\n\n \n landing page click-through that prove there\u2019s some amount of interest in an experience, product or service;\n  \n \n a time commitment for an in-person meeting to view a demo that shows the customer or funder\'s problem being resolved;\n  \n \n a resource commitment for a pilot program to test how the experience, product or service or product fits into a particular environment.\n  \n\n\n\nOnce we have users using our MVO we listen for & tune into the Must-have signal\n\n \n We listen very carefully to find our must-have signal and articulate it.\n  \n \n We Double-down and strip away the unnecessary> focus on building an experience, service or product that is cherished and supported by everyone who uses it.\n  \n\n\n\n\xa0\nDoes this make sense to you? Do you want to learn the hands-on-skills involved?\nI am just about to launch an initiative on behalf of the social enterprise supporting the community. For those who want to learn the skills, this offers an excellent opportunity to learn-by-doing with me.\nLet me know you are interested by leaving a comment below or emailing me: nadia@edgeryders.eu', u'entity_id': 4195, u'annotation_id': 11352, u'tag_id': 1817, u'entity_type': u'post'}, {u'quote': u'yes, great post. What you are saying actually is indeed the fact that there needs to be value creation for social purpose driven initiatives.', u'entity_id': 16291, u'annotation_id': 11351, u'tag_id': 1817, u'entity_type': u'comment'}, {u'quote': u"@Damiano, thank you for sharing your ongoing work and thoughts here! It reflects something I've been considering a lot lately, which is how individual spending choices can be used to reflect and support our values.", u'entity_id': 14269, u'annotation_id': 11359, u'tag_id': 1818, u'entity_type': u'comment'}, {u'quote': u'We came to conclusion that care, giving and receiving, is a basic human need and a human right. It\u2019s not a one-way street, but we need to talk about care as a devalued thing in our society. There are people who really love to give are and do not have the right to get something for it. We thought about how to make people who give care more visible. How can we provide some kind of reward or value for the volunteers. And of course we went in the feminist direction but I think it is a really important thing to value care as a huge thing in society.\u201d', u'entity_id': 494, u'annotation_id': 11364, u'tag_id': 1819, u'entity_type': u'post'}, {u'quote': u"l. I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts.", u'entity_id': 716, u'annotation_id': 11367, u'tag_id': 1820, u'entity_type': u'post'}, {u'quote': u"Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn't really be interested in.", u'entity_id': 29962, u'annotation_id': 11366, u'tag_id': 1820, u'entity_type': u'comment'}, {u'quote': u'(Equally mixed communities and inter-generational interaction would help, but this is increasingly rare. Housing seems to be led by developers keen to focus on young families who have income to buy new-builds on new estates, and marketing focuses on the younger age groups that go\xa0our and spend their disposable income, hence society focuses around such people. What would help is a societal background that valued the more elderly or mature, for their experience, wisdom and human stories.)', u'entity_id': 27817, u'annotation_id': 11365, u'tag_id': 1820, u'entity_type': u'comment'}, {u'quote': u". Unforunately I do not have a name of the Belgian researcher but I have been working on very similar themes in Cape Town when employed by a local org\xa0. I focused very much on the Health Impact pillar of the organization, which adopted a participatory approach in its educational programmes. I managed 2 projects for the org that focused on Community Care Workers who were primarly the ground fighters for TB and HIV. We used Digital Story telling, Theatre and Photovoice as methods for engagement which were very successful in relaying lived experience for the sake of education. I'd be happy to share key learning. This video provides feedback from Community Care Works, and their reflections on the project:\xa0https://vimeo.com/180156715 \xa0and this video features one Digital Story from a community resident:\xa0https://www.youtube.com/watch?v=dy1PHfUMCQY.", u'entity_id': 33803, u'annotation_id': 11369, u'tag_id': 1822, u'entity_type': u'comment'}, {u'quote': u"I was recently in contact with a Belgian researcher working on stigma of TB and HIV/AIDS community health workers. As you see behind the links, she made two\xa0mini documentaries about people involved in those communities. She's now planning to make another round of videos/photographs.\xa0I find it a great way to communicate science and to highlight the community aspect.", u'entity_id': 33787, u'annotation_id': 11368, u'tag_id': 1822, u'entity_type': u'comment'}, {u'quote': u"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming.\nWomen are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation.\nThe violence being perpetrated against girls and women it takes on epidemic proportions.\nAnd instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their \xa0life, their well-being.\nWomen who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ...\nWhat are the primary tasks?\n\xa0To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care.\nThe right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee\nTo be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research\u2026.\nMany seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges.\nWomen \xa0demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed\u2026 crippled\nMany studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor,\xa0The whole society has benefits and profit from that, also\xa0economic empowerment of women can give them the strength and the power to fight for their rights.\xa0What is I have to emphasis\xa0totally crazy, to fight for something that is obvious and should be guaranteed.\xa0But since we live in such a country and such a world, which I will say freely that's gone completely crazy.\nThe first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have\xa0to forget that terrible sentence, you're a girl, you you have to let go, you have to listen, \xa0you must be good,\xa0obedient\nWell, \xa0you do not have to do anything\nBe good and obedient and you'll be good and obedient patients\nIf you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default, \xa0you can be scientist, pilot, astroanut, everything you want\nOf course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing, \xa0to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and \xa0works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable\xa0and smart and successful women, because obviously while men are leding,\xa0we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give\xa0positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is \xa0always something wrong , they have to be perfect to be loved because they are \xa0upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie\xa0and \xa0to be good...\nIt is a great theme, and very serious and \xa0requires indispensable\xa0large and big steps to make the change, so we\xa0won't\xa0any more\xa0read about dark statistics or to be a part of it,\nI forgot about inadequate or not existing\xa0 health status of women and treating them, how horrible gynecologist acting,\xa0a large number of cancers that are not detected at time, shame, \xa0when they\xa0give birth listen insults and so on...\n\xa0I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do\xa0because it is not a choice any more it is our obligation.", u'entity_id': 858, u'annotation_id': 11372, u'tag_id': 1823, u'entity_type': u'post'}, {u'quote': u'I\u2019m talking here about the weapons/arms markets, and other markets based on the dead bodies of other states. Especially after watching the news talking about Aleppo, Mosul \u2026 etc Cheap games to prolong the war, unlimited support for the parties of the conflict, in exchange for contracts and concessions we will know in the future.', u'entity_id': 797, u'annotation_id': 11371, u'tag_id': 1823, u'entity_type': u'post'}, {u'quote': u'War is like a dirty toilet that no one wants to clean someone said...\nViolence begets violence and war is the\xa0ugliest\xa0human invention. For the past \xa04 days\xa0our lives here in Armenia have turned upside down...Things are calm in Yerevan but the situation in Nagorno-Karabakh is on everyone\'s mind. Most people know at least someone who is on the front lines, mostly 18-20 year old boys serving their mandatory 2 year service,\xa0\xa0though\xa0hundreds of volunteers and\xa0army reserve forces are joining.\nIt\u2019s hard to shift my mind\xa0and concentrate on\xa0work at all in this situation...I\'ve been idly browsing and refreshing the news\xa0(local - only official info that is of course censored, intl - absence of reaction and investigative journalism, and azeri- misleading statements and false accusations)\xa0since Saturday morning when the shootings began.\nEven though me and most of the people I know haven\'t really grasped the reality in this information blockade, this is war...this is what war looks\xa0like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it\xa0started...\nFirst thing on my mind -\xa0I do not want my daugher to witness the horror we\'ve been through...second thought -\xa0Armenian\xa0and Azeri people\xa0should gather at the\xa0border in masses and have\xa0free hugs...third thought - war is inevitable, this is the reality, people too brainwashed by their governments, full of false patriotism, nationalism and machism...peacemaking failed once again...\nWe dance and send our\xa0children to fight the enemy,\xa0this is the only way...both sides consider each other agressors and feel the necessity to protect themselves/reclaim their lands....false declarations of ceasefires, provocative war crimes, rejoicing in\xa0the losses of "the enemy" just like in a football match\xa0and asking the gods to protect our boys on the frontline...and\xa0the international community that can only do\xa0so\xa0much \xa0as to "condemn" the violence...\nThoughts and prayers are not enough here. An escalation of this situation may lead to a full blown\xa0war that can set this region back for decades.\nAs I am too paralized to form my own thoughts, I\'ll just quote some of the most objective and reasonable comments I\'ve seen on the internets in the ocean of misleading and incorrect information\xa0for the past couple of days.\nWe need all the attention and help we can get to spread\xa0the message out to the world\xa0to "illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet." Maria Titizyan\n"The timing of these events should not be a surprise. Azerbaijan\'s economy is in terrible shape right now. Their currency dropped 40% in value against the dollar in January. Their entire economy is almost completely tied to oil and oil prices are at the lowest point in a decade. Mass protests against corruption and a depressed economy in Azerbaijan have increased in recent months. Invading Nagorno-Karabagh is an attempt to boost nationalism and act as a distraction from real problems at home. All that plus Russia\'s deteriorating relationship with Turkey, a strong political ally of Azerbaijan, creates a terrible condition for Azerbajian to act aggressively against Nagorno-Karabakh." \xa0Erik Yesayan\n"Armed with the knowledge of the history of this conflict, it is easy to discern that it is not in Artsakh\u2019s interests to break the peace and renew hostilities. Instead, it is Azerbaijan that wishes to retake control of land which, due to the political maneuvering of a third higher power, temporarily fell into its hands but over which it has no legitimate claim." Aram Hovasapyan\nRight now both sides agreed on a temporary ceasefire\xa0while Armenia\'s president is meeting OSCE in Vienna and Azeri PM is in\xa0Iran to attend a meeting with\xa0foreign ministers of Iran\xa0and Turkey...hope this will de-escalate sooner than later...\nAdditional reading:\nhttps://goo.gl/ci3lFU\nhttp://goo.gl/x4XTSJ\nhttp://goo.gl/j6jqUe\nhttp://goo.gl/1jv07R', u'entity_id': 33738, u'annotation_id': 11370, u'tag_id': 1823, u'entity_type': u'post'}, {u'quote': u"Hello @iffat_e_faria, it's hard to create a viral campaign that requires even small effort to engage, unfortunately, people are really lazy.", u'entity_id': 21069, u'annotation_id': 13100, u'tag_id': 2233, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 11374, u'tag_id': 1825, u'entity_type': u'post'}, {u'quote': u'It\u2019s a virtual reality environment based on audio. The training is completed with practice in the real world until the student becomes fully independent from the simulation. Further explanation of how can be found here. SoundSight attracted the attention of the Italian government and a number of organisations and advocates that offered its support. \xa0Among them were, Cecilia Camellini, Champion Paralympic Swimmer. When asked what she thought of SoundSight, \u201cwith training and effort athletes can improve performance.\u201d', u'entity_id': 701, u'annotation_id': 11373, u'tag_id': 1825, u'entity_type': u'post'}, {u'quote': u"How can communities become more visible and members interact more easily?\nHow do you make the actions of the community visible to the individuals?\nHow do you make individuals' actions more visible to the community?", u'entity_id': 541, u'annotation_id': 13101, u'tag_id': 1826, u'entity_type': u'post'}, {u'quote': u's they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state "If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn\'t want to be sick like that so he stopped".', u'entity_id': 33824, u'annotation_id': 11376, u'tag_id': 1826, u'entity_type': u'comment'}, {u'quote': u"Loic: The core needs he noticed in others is to learn information about what others are doing, get information about collaborations; and second, the need for visibility. Personally he has come here for housing project, but Winnie's story is useful to hear also professionally.", u'entity_id': 541, u'annotation_id': 11375, u'tag_id': 1826, u'entity_type': u'post'}, {u'quote': u'Not clear what happens when people say \u201coh, let\u2019s have no structure and be free\u201d. Infrastructure is by definition invisible. We need to start understanding what it actually is.\n\n\nTory:', u'entity_id': 38811, u'annotation_id': 11739, u'tag_id': 1826, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 780, u'annotation_id': 13102, u'tag_id': 2235, u'entity_type': u'post'}, {u'quote': u'Idea is about helping blind people about the outside world\u2019s obsticles. Smart stick should have a simcard for navigation (GPRS) communication with friends, family and hospitals. Smart stick should have accelometre sensor to sense the obstickles in streets and roads. It should be used with earphone. It should converts envori- ments conditions to sound via APPs or API\u2019s of google Maps. Normal people could use it too, it can be designed as 2 peaces (modular) People without disabilities can take the top part from the stick and put it in their bags (with earphones)\n\nWhat are the main aspects of this project?\n\nOur goal is to help the blind people. Our perspective is to find a way to eleminate the difficulties they face everyday.\n\nHow to?\n\nWe can\n\n\nuse a eyeglasses with earphones - headsets and eye bandages\nblind smart sticks\n\n\nTechonolgy out there\n\n\ninfrared sensors\nArduino + 3 ultrasound sensors+ buzzer +motor - Another chipset + RFID + ultrasound sensor\n\n\nProject Halo:\n\n\nRigid frame (I used a round embroidery frame)\nFemale headers (for the sensors)\nUltrasonic Rangefinders (Parallax Ping Rangefinders) - Wire (Wires with male and female leads are conve-nient)\nGlue\nTwist ties to tidy up wiring\nSoldering station\nMale headers (for creating a bridge to feed 5v and\xa0ground\nRJ-45-Term Screw Terminal (2) - RJ-45 Cable\nMarker\n\n\nMotor Modules:\n\n\nVibration Motors (5) - Motot, VIB,3V/60mA, 7500RPM\nGrid-Style PC Board\nMale header pins\nMotor "shroud" (to prevent things getting sucked into\xa0the motor)\n\n\nHaptic Headband:\n\n\nHeadband\nSewing Kit\n5 Motor Modules\nWire (Wires with male and female leads are conve-nient)\nSafety Pins\nFemale headers\nSoldering station\nRJ-45-Term Screw Terminal (2) - RJ-45 Cable\nMarker\n\n\nWiring the Microcontroller:\n\n\nArduino Mega 2560\nWire (Wires with male and female leads are conve- nient)\n5 LEDs\nDarlington IC - ULN 2803A - 2 port screw terminal\n9v battery\n5v regulator\n\n\nBuilding the Software:\n\n\nUSB cable\nPC (for editing code and downloading to Arduino)\nArduino\nArduino development environment (www.arduino.cc) - Source Code, modified Ping.h library\n\n\nSmart Blind Stick - Instructables\n\nAn Arduino uno.\n\nA Ultrasonic sensor( HCSR04 ).\n\nA Mini breadboard.\n\nA 9 volt battery.\n\nA 9 volt battery connector.\n\nDC male power jack.\n\nA Buzzer.\n\nSome Jumper wire.\n\nAn Broken cellphone from scratch.\n\nA Toggle switch.\n\nOther tools and parts used in this project :\n\n3/4 inch diameter PVC pipe (used for making the stick).\n\n3/4 inch diameter PVC elbow.\n\nInsulation tape.\n\nSome small screws for mounting Arduino. Screwdriver.\n\nUtility knife.\n\nInstant adhesive Glue.\n\nA Box to Put your Arduino and other electronics, or think about it later.\n\nXploR cane\n\nThe \'XploR\' mobility cane was developed at Birming- ham City University\n\nIt uses a camera and built-in sensors to scan for faces in a crowd\n\nIf it recognises a face the cane vibrates and guides user with audio cues\n\nSensors work up to 32ft (10 metres) and faces are stored on an SD card\n\nRead more: http://www.dailymail.co.uk/science- tech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family -crowd-guides-blind-user-exact-location.html#ixzz4L 51k7yJX\n\nWhat have been done?\n\n\nhttp://imwm.org/the-infeared-walking-cane-by-parasuraman-kannan/\nhttp://arduinoart.blogspot.it/2015/05/project-guide-stick-for-blind-people.html\nhttp://www.instructables.com/id/Smart-Blind-Stick/\nhttp://www.instructables.com/id/Haptic-Feedback-device-for-the-Visually-Impaired/\nhttp://www.dailymail.co.uk/sciencetech/article-3090790/X- ploR-cane-uses-facial-recognition-spot-friends-family-crowd-guides-blind-user-exact-location.html', u'entity_id': 770, u'annotation_id': 13103, u'tag_id': 2236, u'entity_type': u'post'}, {u'quote': u'In our previous post, we concluded that nobody had really ideated SoundSight all alone\u2026 no solitary genius working on an ingenious solution, no hero. A collision of honest and upfront conversations about existential experiences and a research of numerous solutions that had yet to be exploited in a certain context, rethinking their business models.\nAt this point, SoundSight was a completely new initiative. A virtual gym to train echolocation, and while the idea of features and UX design accumulated quickly, the team pursued a proof-of-concept and something that others could think of as a minimum viable product.\nThe first prototype was a mess. To the users invited to a test, it must have seemed unbelievable how a software engineer could have thought that a piece of software reverberating in a fixed environment and artificial sound would have been enough to suggest how the platform would work. Not to mention, a command line interface, and a rather lengthy procedure to change the position within the simulated environment. But thanks to the outgoing and always positive outlook of Irene, they never thought of disinvesting: SoundSight was an experience for them.\nThe team worked hectically on Irene\u2019s feedbacks, and a really workable proof-of-concept finally became available around Spring 2015.\n\xa0\nLet\u2019s leave it again to Irene\u2019s recollection:\nIrene: \u201cHello Mario[1], we are here again\u2026 this time I promise you will be impressed\u201d\nMario: \u201cHi Irene, it\u2019s a pleasure\u2026 and rest assured, last time I was already impressed, although maybe not as you hoped for\u2026 with my friends we have been laughing a lot about your engineer\u2019s idea of a prototype!\u201d\nIrene: \u201cOh no, Mario\u2026 don\u2019t abuse him, or who knows when we will find another person with the same talent and will to do something meaningful even with no immediate profit in sight! I am counting on you to keep certain things\u201d\nMario: \u201cDon\u2019t worry Irene, I have only told the story to one or two\u2026 hundreds of people\u2026 ahahah!\u201d\nIrene: \u201cDoh! \u2026ok Mario, then to pay you back, today\u2019s text will be extra tough!\u201d\nMario: \u201cI am ready for the challenge!\u201d\n\xa0\nIrene sets up the simulation\n\xa0\nIrene: \u201cOK Mario, it\u2019s ready. I would like to ask you to try the first round without me sharing with you any information\u2026 I want you to focus on your impressions only, tell me how it feels\u201d\nMario: \u201clet\u2019s start\u201d\n\xa0\nThe simulation is run, Mario is moved to several places in a cathedral in this virtual world, and listens to the echoes of a tongue click\n\xa0\nMario: \u201cIndeed there have been a lot of improvements, it is smooth now\u2026 last time it was a bit of an annoyance to have to wait for so long every time you wanted to move the position. However, listening to a prerecorded tongue click\u2026 are you sure these are simulations?\u201d\nIrene: \u201cYes Mario\u2026 we know it still requires a bit of imagination, but I assure you this is a real time simulation. Later during the tests, I will offer you the possibility to move the position arbitrarily, and you should notice it. It is definitely on our list of priorities to introduce real-time input of user generated tongue clicks\u2026 we are just not there yet\u2026 you are one of our very early testers, and I cannot thank you enough for that\u201d\nMario: \u201cDon\u2019t, I enjoy this experience, and I really like the concept. Somehow contributing to its realization makes me proud. However, you need my honest opinions, and I think the ability to exploit the user\u2019s own tongue click will improve the experience terrifically. I have realized that you have made me move through wide and small environments\u2026 but I haven\u2019t been able to identify where I was.\u201d\nIrene: \u201cThat\u2019s already quite good Mario! I have only given you one point for each environment, and you have already been able to tell something about them\u2026 you are the best! We will focus on learning curves and performances later again, can you tell me anything else about your general impressions at the moment?\u201d\nMario: \u201cIt\u2019s difficult to tell you more from just this\u2026 maybe we can move to the next exercise?\u201d\nIrene: \u201cYes, here we go. Get ready, and now I will let you walk through the environment of today, and you will hear repeated clicks\u2026 try to guess what it would be\u201d\nJust a quick run of the new scenario on the simulator\nMario: \u201chmmm\u2026 the smoothness has improved a lot\u2026 but I really could not tell you what it is. It seems a large environment, I have been getting away from a wall and after getting closer to another?\u201d\nIrene: \u201cI had told you would not have an easy life, after those jokes about our engineer Mario! But you did quite well. It was a cathedral\u2026 now that I have told you, could you confirm it or would you still be doubtful?\u201d\nMario: \u201cLet me try to listen again\u201d\n\xa0\n\u2026the simulator runs again shortly\nMario: \u201cYes Irene, now that I know, it could well be\u2026 I had some doubts, with no context it could have been a theater or a large gym, \u2026\u201d\nIrene: \u201cIndeed\u2026 now I would like you to do a few exercises\u2026 I will tell you this time what you are going to listen to, precisely, and you will have to focus on the features\u2026 later there will be a test\u2026\u201d\nMario: \u201cFor me or for the software?\u201d\nIrene: \u201cFor both, Mario, don\u2019t try to escape your responsibilities\u201d\nMario: \u201cAhahah\u201d\n\xa0\nThey run the training set\nMario: \u201cWell Irene, we will see how I perform later\u2026 but you should consider developing an interface to feed information about structures, volumes, and positions, directly to your users\u2026 it is nice to chat with you, but if you really think of this as a tool for making echolocation training accessible to anyone, the fact that you need to have by your side another person as your interface to the system doesn\u2019t add up\u201d\nIrene: \u201cYou are right. Together with the real-time acquisition of users\u2019 clicks, this interface is at the top of our list of priorities. We are thinking of using a simple tablet of mechanically executed needles to offer a map of the space being tested and a natural interface\u2026 or some haptic 3D interface, but that may be more expensive and complicated. We have not yet looked into that enough\u201d\nMario: \u201cYou would need a lot of needles to offer a useful interface\u2026 you can try prototyping something quick maybe with Arduino\u2026 but I would be a lot more curious about the haptic interface. I have seen some applications with holograms and they looked impressive.\u201d\nIrene: \u201cWe will keep this in mind. Of course, we need to make it as simple and cheap as possible, but still functional\u2026 and we hope the prices of that hardware will be democratized soon. Now that we have taken a small break\u2026\u201d\nMario: \u201cWhat break? Are you not letting me off yet?\u201d\nIrene: \u201cMario, let\u2019s just take the test before the coffee\u2026 I will let you off then, for today\u201d\nMario: \u201cOk, ok\u2026 a no is not possible anyway, isn\u2019t it?\u201d\nIrene: \u201cIt\u2019s always possible, but I will insist with a smile\u201d\nThey run the tests\nIrene: \u201dif we compare today\u2019s performances to those from the last tests, both with the software and in the lab with the moving panels, you have really gotten better Mario!\u201d\nMario: \u201cBut Irene, how can I be sure if I have truly learned? I mean\u2026 we should arrange tests where there are coupled with some sort of benchmark\u2026 maybe similar tests in real world, you could imagine a mobile lab to do so\u2026 or even just arrange competitions among users\u201d\nIrene: \u201cThat\u2019s a really good idea, Mario! We will seriously reflect on how to arrange this, but for the time being\u2026 do you think your partner would like to try it out against you?\u201d\nMario: \u201cBut she sees\u2026\u201d\nIrene: \u201cit should not be an advantage, and I promise you I will not show her the screen\u201d\nThis is now a different story\u2026 but after being initially baffled, Mario\u2019s partner took it to her heart to seriously compete with him, and in the end, she won one of the tests, confirming anyone can learn this skill.\n1\xa0Please be reminded that Mario is a blind guy. However, the language of sight is so ingrained in our culture\u2026', u'entity_id': 578, u'annotation_id': 11382, u'tag_id': 2236, u'entity_type': u'post'}, {u'quote': u'\u201cI can never thank the Reggio Emilia blind people union enough for accepting me in their community and interacting with me so sincerely and proactively. Let me say that 2 years ago I started spending some time with them, to enquire about their daily challenges, and to shadow some of them (who kindly volunteered) during their daily routines, I had conceived this as any other didactic activity of my university education, excitingly on the field, but not more special\u2026 how wrong could I have been!', u'entity_id': 577, u'annotation_id': 11381, u'tag_id': 2236, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 5117, u'annotation_id': 11380, u'tag_id': 2236, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 764, u'annotation_id': 11379, u'tag_id': 2236, u'entity_type': u'post'}, {u'quote': u"Thank you for the comments regarding SoundSight. @andra Pop The project is moving along at its pace, as much time is dedicated to working with the blind community, as they are part of the co-creation team. There is indeed an initial prototype that has been tested.\nYes, there is a lot of work and research being done to find ways to improve life for partially-sighted and blind people. This software transforms lives for the better and will be available for everyone. \xa0It\u2019s a great step in improving the human race's understanding of its own vast and incomprehensible capabilities. There will a follow-up and we will share on the developments.", u'entity_id': 23605, u'annotation_id': 11378, u'tag_id': 2236, u'entity_type': u'comment'}, {u'quote': u'This is a story how a new initiative Soundsight Training promises help for blind and visually impaired gain more mobility and independence.\nThe website for Soundsight Training is http://www.soundsight.ch\n\xa0\nDeveloping a technology that could sense and reconstruct reality for blind people can be one approach. But, a technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings is actually empowering then to be independent from aid devices.\nMany blind and partially sighted people of all ages are unable to lead independent lives because they are not getting the support they need. The needs of people who lose their sight are many and varied and the support provided must be personalized if it is to meet individual needs. Teaching the blind to see with hearing using echolocation would be a way to make the largest impact, beyond the use of sight. \xa0The benefits of acquiring this skill changes the way you interact with your surroundings on a daily basis. It decreases limitations and opens the door to new opportunities.\nThe Journey begins\n\nIrene Lanza, Management Engineer, CEO of SoundSight Training, knows it\u2019s possible. Irene came in contact with the Scimpulse Foundation while participating in the Challenge Based Innovation program of Ides2quare at CERN in Geneva. The challenge was to design something that enabled blind people to perceive the surrounding environment. It was then the idea was planted. \xa0Many opted for a mobile device approach, something else called the attention of Irene. Teaching the blind to echolocate themselves?\nThrough this experience, Irene had the opportunity to interact with the visually impaired. Through working with mothers of blind children and getting to hear their stories, setbacks and concerns the more Irene wanted to do something to support and empower them. Guidance of blind and visually impaired people is a clear unmet need. However, most blind and visually impaired people want to go out and enjoy independent mobility.\nThe environment in which we live is becoming increasingly complex. Even a journey across a city \xa0requires a range of skills including being able to avoid obstacles on the pavement, to walk in the right direction, play a sport and the list goes on. These tasks may seem trivial, but for someone with a vision impairment, this is a challenge and a skill that needs to be learned. SoundSight enables the development of a hearing talent that compensates for the missing eyesight.\nSee With Sound\n\xa0\nSoundSight Training was developed to enable the blind to see with sound. Together, with Henrik Kjeldsen and Dr. Marco Manca the first prototype of an echolocation training system, was created.\xa0\nIt\u2019s a virtual reality environment based on audio. The training is completed with practice in the real world until the student becomes fully independent from the simulation. Further explanation of how can be found here. SoundSight attracted the attention of the Italian government and a number of organisations and advocates that offered its support. \xa0Among them were, Cecilia Camellini, Champion Paralympic Swimmer. When asked what she thought of SoundSight, \u201cwith training and effort athletes can improve performance.\u201d \xa0\nExperience the world more independently\nSoundSight Training is a spinoff of the Let Me See Project, the first from the ScimPulse Foundation \xa0I.M.mortal research program. It was a 3 year journey that started from a workshop and now partners with governmental organizations to impulse the idea forward beyond the prototype stage. Now it has its own heartbeat. SoundSight Training designed to helping people explore the world more independently.\n\u201cThis software has the potential to enrich the lives of people who are blind and visually impaired. Everyone can learn this skill, it\u2019s accessible to everyone and when we design for greater accessibility, everyone benefits.\u201d says Irene Lanza. \xa0\xa0\nImproving performance, challenging yourself, to overcome limitations, all of this effects humanity\u2019s growth, expansion and well-being. The challenges for the visually impaired are enormous, so immense are the ramifications for those now living without sight, and so exciting is the initiative on the horizon.\nFor more information about SoundSight initiative, please visit www.soundsight.ch', u'entity_id': 701, u'annotation_id': 11377, u'tag_id': 2236, u'entity_type': u'post'}, {u'quote': u'..is that it lowers the barriers to this type of knowledge. It\xa0is about learning\xa0and starts with conversations, not therapy, which sounds much heavier and almost like you have to be a "patient" or close to one\xa0to access it. Who wants to be a "patient"\xa0and can walk in confidently? Probably very few people, or not even those who need it the most.\xa0Even the word "trauma" is so heavy that I can see how a friendlier setup and human face can help break the ice. Don\'t know if it\'s a strict deontological choice, but you might want to try an experiment where you dont use the word at all in your communication (for example for an event), you\'d only use "pain that doesn\'t go away" or something..Then you explain the proper terminology while at it. Who knows, maybe you get even better results.\nThank you for working on this piece Ybe. Quick heads up: your link to the list of things we can help with does not work.. so waiting. With @Nadia and a little luck we might meet you in Greece in December!', u'entity_id': 8060, u'annotation_id': 11385, u'tag_id': 1829, u'entity_type': u'comment'}, {u'quote': u'I found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability.\nIn speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability...\nAnyway, thank for posting.', u'entity_id': 19688, u'annotation_id': 11384, u'tag_id': 1829, u'entity_type': u'comment'}, {u'quote': u"\u201cDon\u2019t assume a person with a disability is easily offended.\u201d\n\xa0\xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \u2014\u201cDisability Etiquette\u201d from Wikipedia.\xa0\n\xa0\nAt the beginning of the research, we asked ourselves, \u201cWhat is disability?\u201dAccording to Cerebral Palsy: A Guide for Care by Bachrach Miller, the terms regarding disability are defined as such:\n\u201cImpairment is the correct term to use to define a deviation from normal, such as not being able to make a muscle move\u2026Disability is the term used to define a restriction in the ability to perform a normal activity of daily living which someone of the same age is able to perform. \u2026 Handicap is the term used to describe a child or adult who, because of the disability, is unable to achieve the normal role in society commensurate with his age and socio-cultural milieu\u2026All disabled people are impaired, and all handicapped people are disabled, but a person can be impaired and not necessarily be disabled, and a person can be disabled without being handicapped.\u201d[1]\nNowadays, more and more people begin to pay attention to how to address people with disabilities. The use of \u201cpeople-first language\u201d* in English aims to \u201cavoid the subconscious dehumanization when discussing people with disabilities\u201d[2]. However, as the researches continue and after we interviewed a few people with disabilities, we soon realized that language is not really a problem. Every person we interviewed all said that the word \u201cdisability\u201d doesn\u2019t bother them at all and they don\u2019t mind being called \u201cdisabled\u201d because it is a fact. (Interview with Raul Krauthausen by @Moriel).\nSo here is the question, if the language / term / vocabulary doesn't matter as much as we think, where does the problem really lies?\nAnother example would be: why is it okay to say someone has dark hair but not okay to say someone is a gay or someone is a black especially in the western countries? It is because people who used these terms earlier in the history had a strong prejudice and discrimination in mind. In the end, language was created to describe things as how they are. There is nothing wrong with language itself if people don\u2019t think otherwise to begin with.\nCould it be that some of us\u2014people without physical disabilities\u2014think that the current terms we use are offensive is because we are subconsciously offending them in the first place? So the question is not how to change the language, or other visible things. The question is how we can change people\u2019s opinion.", u'entity_id': 694, u'annotation_id': 11383, u'tag_id': 1829, u'entity_type': u'post'}, {u'quote': u'Where:\nItaly\nWhen:\n2013\n\xa0\nWho: Marco Sangiorgio, Vincenzo Iadisernia, Antonio Ianiero (Unterwelt)\nTweet:\nUGO is a home automation system which allows users to control home devices through speech recognition technology. Few examples: turn on and off the light, lift or lower a rolling shutter, signal gas leak, exc.\n\xa0\nSimilar ideas:\n(http://hackaday.com/2013/08/11/voice-controlled-home-automation-uses-raspberry-pi-and-lightwaverf/)VoicePod (http://www.voicepod.com/videos/), AmazonEcho (http://www.cnet.com/products/amazon-echo-review/)\n\xa0\nLinks: \nhttp://www.unterwelt.it/ugo\nhttps://www.youtube.com/watch?v=j02W99Z8GNI', u'entity_id': 763, u'annotation_id': 11386, u'tag_id': 1830, u'entity_type': u'post'}, {u'quote': u'These stories here are so well written and impressive - and this one particularly so.\n\nIt still took me a few attempts to endeavour it, because more often than not it\'ll tempt you to throw everything down and want to help with what the author is working on. This one is no exception.\n\nHowever this time I\'ve been busy with something that could make a contribution that is interesting to your case ( @kate_g ) . I\'ve been meaning to do it as a little story aswell but it really is only hobby format now - and I\'d need someone with other background to apply it.\n\nTo keep it really brief I\'ll just lay out the bare bones, though in application it could be tweaked in very different directions (education, journalism, anthropology/ethnography).\n\nIn terms of concept think the opposite of broadcasting*, where one signal (on one schedule) goes out to everyone. Here I try to reach niches, perhaps indirectly, as much on their schedule & terms as possible, and I listen to them (ratio of listen/tell can be tweaked).\n\nIn terms of hardware I am currently sitting on 10 cheapo mp3 players and some mp3 voice recorders. The idea is to put some audio content on a small memory card (perhaps also some visual content e.g. on playing card size). This costs 2-3 $ and can hold days worth of structured audio content. The strucure of the content is important because I hope to turn the play+listener into a temporary agent (a little tolkeen\'s ring style). So you would have incentives there for the player (or several) to traverse the community networks in a mix of chance, human behavior, and programming, and hopefully end up in someones lap who may have been incredibly hard to find using other methods.\n\nYou can then get the recorder to this person (or have the person respond via a phone recording in a "relatively 1st world context") and document things in long form (8 GB - up to a week). Parts of this will be amiable for speech to text conversion. ( @brenoust that is why I asked the last time we talked)\n\nOnce you get the text corpus you can open it up the the digital domain ( @amelia can then probably mine this from an enthnograpic/anthropologic perspective) while it can remail fully anonymous. I also have a concept in mind for quantitative feedback which is similarly simple tech for users (colored beads on a string) but machine readable.\n\nThat way you get quant + qual abstractions but you can still jump to the original content fairly easily (provided you speak the language). It ought to scale quite well, especially if you can reuse some of the players.\n\nThe motivation for this came from a number of directions (OLPC griping, importance to capture emotion in human interaction, World Bank issues/capability building (two way!)) so I\'ve played through a couple of different concepts that can perhaps be divided by organizational/technical aspects, content/didactic aspects, and info flow direction/volume.\n\nI\'m currently working on putting together a prototype kit that could plausibly run for a couple of months (and with minor support perhaps years) as a replacement for a "sit-in school" in remote areas that have trouble with teacher absenteeism ( @nadia perhaps interesting to Olivier @ Co - also best of luck in Paris!) and people being too poor to abstain from manual labour for so long (and of course blind, illiterate, etc.). At the moment I\'m checking the recharge curves to see how long the cheapo players will survive before someone needds to know how to fix/replace/work around the battery. If any of you see potential there I\'d be happy to discuss it and set it up as a proper story.\n\n*that is why the working title is currently "small casting". Suggestions welcome', u'entity_id': 26057, u'annotation_id': 13104, u'tag_id': 1831, u'entity_type': u'comment'}, {u'quote': u'Instinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation.', u'entity_id': 18565, u'annotation_id': 11390, u'tag_id': 1831, u'entity_type': u'comment'}, {u'quote': u'By default one could have most of the players in circulation doing more of a PU for poor young women with the appropriate content and a good amount of infotainment mixed in. And of course 1-2 tracks for repairing/charging etc. the players, 2-3 tracks for getting the feedback from the women, and perhaps another couple (later in the process) for building the capability to translate/record additional lectures into the local language.\nI currently have envisioned about 100 mp3 players (shared among 2-3 people each) with appropriate support to keep them going for a couple of months minimum in the field which runs slightly above 1000 USD. Of course it\'ll be critical to work on ways to reduce the technical attrition rate and balance/channel "misuse" into something arguably helpful.\nThen it would be interesting to see how results vary between a "helicopter distribution" vs "digging into a niche". And of course on the horizon is the ability to plug these collected monologues or discussion into a platform like ER. That way you\'re not only getting the "word on the street" but also the "word at the water hole" with some lag in very rural places.', u'entity_id': 27320, u'annotation_id': 11387, u'tag_id': 1831, u'entity_type': u'comment'}, {u'quote': u"I may not use them straight away, but who knows what is around the next bend. In terms of players I found a couple really cheap at banggood.com (with earplugs & cable!) but I had problems ordering so I used various amazons (B001B43J8E and B01LAE19D6 ) for now. I actually want very limited capability on the players to start with so that you have to listen through a lecture to get to the infotainment/music part behind it. The cheapo players are fine for that. The other thing that is partially a feature is their crappy 110mAh battery. Currently I am testing the common failure modes, and it also looks like it will be possible to run them without battery directly from either a bucked 12V battery, or a boosted low voltage source (AAA), and of course sunny PV. All of those options (and more) will be in a full kit. In terms of wearing them - they work fine under a hat or headscarf. With 15g they should not be much of a nuisance around the neck either.\nAs for mp3 recorder I think you are right - there is no really cheap option. I've bought this ASIN B01G8OK1O6 for 20$ and it works very well so far. However at that cost I can't hand them out to just anyone, but I first have to find reliable candidates. Probably I'll also have to work with other recording formats in the beginning. There are a couple of other somewhat decent recorders around 10-15$ but they don't save into mp3 or aren't exactly inuitive.\nRegarding your translation (I assume mostly into audio format) this is what I would do: Go around at the schools and ask the teachers if they can recommend someone who has a nice voice and good pronounciation and English skills. Ugliness, bad eyesight, physical deformity, rural upbringing is all a big plus. Probably won't hurt if you let 3-5 try translating and recording the same piece. Then find someone above average knowledgeable in the actual field work who has a somewhat deeper understanding of the issues and let him/her review the recordings. That is your first team. Then make second team like that and use it to translate some sections of the first piece back into English. Eventually you will probably need a Nepalese speaker who picks up enough audacity (the software) to process this intermediate product into a decent lecture - this person can sit anywhere though.", u'entity_id': 27590, u'annotation_id': 11388, u'tag_id': 1831, u'entity_type': u'comment'}, {u'quote': u'There is something in spoken expression, being listened to and accepted that is\xa0just vital for emotional processing. With a few technologists I\xa0prototyped some systems that used voice recordings to play back these "real" expressions to others.\xa0Again the emphasis was not on mental illness but on the similarities and the differences in the\xa0longings of the inhabitants of particular locations - the project was inspired by thinking about\xa0how it might be possible to\xa0make networks in Nepal that in some way help\xa0the expression and social processing of the shock around the earthquake.\xa0However,\xa0there had been a depth in\xa0the experience of the interchanges that had happened\xa0whilst\xa0making the recordings that were\xa0more interesting than the voice playback system. The interviews\xa0always came out of a "live" sharing of experience (ie. the interviewee\'s expeirences and my own) and involved risk,\xa0personal disclosure,\xa0agency and shared discovery in a way that listening to a recording does not.\xa0I am still wondering about\xa0digital systems that allow\xa0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\xa0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\xa0Witnessed formal\xa0statements - like rituals - can create marker points in people\'s lives.\xa0Alchoholic\'s anonymous is probably a relevant example.\xa0I wondered about the Samaritans model which sets up this sense that you can make a telephone\xa0call if you are desperate and the "Samaritan" is steady,\xa0sane and absolutely OK. I wonder about\xa0a network\xa0that simply says: whatever you are going through is part of the human experience ie. there is no\xa0broken experience, but there certainly is incredibly challenging experience. \xa0\nIt feels like a\xa0given that two people who are\xa0in grief may find solace in sharing their\xa0real experience and connecting.\xa0\xa0And yet, to generalise,\xa0Western communities often put empahsis on usefulness in society and direct\xa0those\xa0exhibiting signs of mental distress to simply "be OK"\xa0/ go on medication / fix themeselves\xa0-\xa0\xa0I totally agree with the point you are bringing out that\xa0"the community" is often woefully\xa0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\xa0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\xa0Perhaps I\'m thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\xa0that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved in processing the emotions experienced in\xa0that place. I\'m aware this is a poetic notion but I think\xa0various imaginative\xa0re-framings\xa0of the issue of mental health\xa0is what\'s needed. Maybe this would only work as a\xa0three way conversation with someone trained and with really\xa0clear guidelines around use but my thinking here is that what\'s needed is not this expert / patient relationship but two humans sharing different experiences of living in a similar\xa0place.\xa0\nMy friend Denis Ngala at\xa0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\xa0health and cultural knowledge was telling me about the work that was being done in Kenya\xa0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\xa0he was communicating\xa0was that recovery was not the problem of the victim\xa0of torture\xa0alone, but that it was the\xa0community\'s task. They were working\xa0to educate the community around how to support the individual live beyond\xa0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\xa0can be life changing.\xa0I work a lot with VR and seeing through another\'s eyes is certainly helpful but what\xa0really leads to\xa0change is\xa0honestly communicating difficult\xa0experience and listening to others and accepting their experience. There\'s some sort of validation in the honesty of that\xa0process that allows for shifts.\xa0There are lots of CBT, brain training, "look at things brighter" apps around but perhaps\xa0there\'s room for bold\xa0digital networks - with some serious legal tick boxes in place\xa0-\xa0that\xa0make possible structured honest relational\xa0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\xa0speaking in one\'s own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\xa0ways that communication can go, but\xa0there\'s a saviness emerging around\xa0structuring and limiting online\xa0encounter and creating a precise\xa0invitation that makes me think it\'s possible. Online experiences\xa0that move\xa0into\xa0relational and creative territory and away\xa0from the sense that\xa0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\xa0like winning in a\xa0game - there\'s something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\xa0being in dire straights and make\xa0it feel like it\'s worth making the epic journey back to life?\xa0Not sure, but you\'re right that there is a real need for help\xa0with\xa0processing emotions and it\'s something that a healthy culture should be able to give.', u'entity_id': 16456, u'annotation_id': 11389, u'tag_id': 1831, u'entity_type': u'comment'}, {u'quote': u'The guy wearing the shirt is Nicu, he was actually the\xa0chef coordinating everyone \n\nRegularity also means lowering coordination as you fall into some clear processes - now a lot of the time has gone into thinking about the concept, drafting invites etc. All this would be taken care of in future events.. But the people who seamlessly make stuff happen - like Cami aka Ponyo, or @Natalia_Skoczylas \xa0or @Yannick from what I know  are very precious.\n\nOnce you have the building blocks, stepping into a friendly strucure is much easier. \xa0I surprised myself thinking about how cheap it is to be part of\xa0stuff like this:\n\n\n\n\n\tVolunteering semi-anonymously is great. In this age and in the knowledge economy, I hardly know any people who don\u2019t have an organisation or a project that\u2019s their official \u201cbaby\u201d. Everybody is a co-founder of something. So being able to squeeze great work in between one\u2019s official hats makes for quite a breathing space.\n\n\n\tIf we could all volunteer 2-3 hours for someone\u2019s project with\xa0no agenda whatsoever it would be so much easier to barnraise around highly ambitious things.\n\n\n\tYou don\u2019t have to be an expert on food or run a civic organisation to claim a say in a pressing issue - the issue is 100% unresolved and no one can claim authority on it.. so: blank slate to experiment!', u'entity_id': 10666, u'annotation_id': 13107, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u"I remember @Alex_Levene writing about the camp in Calais and the fact that coordination happens through medium to long term volunteers. Could they\xa0be the kind of primary\xa0asset that can help do inventoring, mapping, research for this stage you're at?", u'entity_id': 14969, u'annotation_id': 13106, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'It has 300 volunteers , of whom a little more than half are doctors of various specializations and pharmacists.', u'entity_id': 4913, u'annotation_id': 13105, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u"Some of the facilities and services on camp are staffed and operated my residents of the camps. Both the Ashram Kitchen (link above) and the Jungle books use people from the camps to organise (cook, clean, serve, staff etc) their operations. Some parts of it a situated in specific areas of the camp and the people who live close to those amenities operate as security and safety overnight.It's very much a case that the residents are very active on site. Whenever organisations start to build additional shelters, or do maintenance/repairs the locals get heavily involved. At the moment we aren't allowed to bring large-scale building material onto the site so resourceful communities and individuals are doing a lot of self building using scavenged wood and tarpualin/waterproof fabrics. There are lots of skilled people on the camps, some of them have been engineers, large scale construction workers so us volunteers are always happy to bring equipment, hand it out and then stand back and let the professionals handle the work.It is probably true to say that there aren't any refugee-led projects on site, or if there are, i am not aware of them yet. It's certainly something i could find out more about by asking around.", u'entity_id': 39334, u'annotation_id': 11654, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'Hi Alex, how are you? Sorry to have missed your visit- just back  an hour ago after an intense week + in Berlin. Very curious to hear about your experiences and reflections. In part because I would like to volunteer this spring but am unsure as to where I can meaningfully put my skills etc to use. In part because both Ezio and myself are adamant that this should be one of thd focal points in opencare', u'entity_id': 39330, u'annotation_id': 11641, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'All of these services are coordinated by long to medium term volunteers, who spend their own money and time to care for the people on camp without receiving any direct pay. Sometimes fundraised money is spent to provide accommodation and travel expenses to volunteers but a large majority of people live out here entirely on the own funds.', u'entity_id': 39328, u'annotation_id': 11640, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u'For the past 3 weeks I have been working as a volunteer through the central warehouse, L\u2019Auberge des migrants.', u'entity_id': 39328, u'annotation_id': 11632, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u"Challenges we still face are keeping continuity in the work of the group and preservation and transmission of knowlege as members join and leave the project, something that is becoming more urgent with our developing international collaborations. The urgent questions of distributing the work effectively and making good use of everyone's time and enthusiasm and providing all involved with the support they need has us eager to develop better organization and get people with better organizational skills involved; let us know if you can contribute in these ways!", u'entity_id': 859, u'annotation_id': 11402, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u'Volunteer time can drastically undercut the cost, and make this type of research more efficient than what a Novartis could hope for. We already seeing signs of that in the DIYbio movement. But\xa0we are still learning how to leverage the\xa0advantage. Hardware, software and wetware are definitely enabling us at this point, but are also still developing. Hopefully these things are bringing us to a tipping point, quicklier than the large companies are.', u'entity_id': 12977, u'annotation_id': 11401, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'cultural projects. But we\u2019re already at the limit of what we can achieve as volunteers. It\u2019s a classic Catch 22 volunteer trap \u2013 we need money to buy us more time, but we don\u2019t have enough time to work on finding money.', u'entity_id': 6427, u'annotation_id': 11400, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u"Thanks, we've had some struggles such as low volunteer numbers and consistancy of volunteers. Still haven't cracked that. I think there's potential for job creation as we outlined here and here in our visioning document, and submitted to Galway City Council, as they invited submissions from community groups for policy suggestions (particularly Policy 5.). Gaining employment doing something I enjoy, that also benefits my community was a driving force for at the start. There doesn't appear to be real jobs materialising in this area in Galway, so I'm staring to shift my gaze a little.\nPlenty of successes there though; learning, eating, conversation, connections and engagement with school activities. This year the focus is on getting more involvement from parents of the school kids and people in the neighbouring houses.\nStamina comes from following a common sense approach to resilience. Food is a base need, and the process of growing it benefits health, community, physical environment and financially it helps a little to get veg every now and again for our efforts. I can't imagine not growing some food every year. It feels like the most rational thing I do with my time.", u'entity_id': 20731, u'annotation_id': 11399, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'Hey everyone,\nthanks for your thoughts! The idea of an "interactive camp" whithout\xa0the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different "problems" from each other but to organize the camp differently from the very first:\n"We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs."\nand as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here:\xa0http://www.roc21.net)\nThe idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move\xa0to a better place as soon as possible.\xa0\nBut in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp\xa0where we were\xa0building stuff all together, was really nice because we were doing something with our hands and totally\xa0forgot the situation around us.', u'entity_id': 26018, u'annotation_id': 11398, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'Hi there, i\'m following this interesting discussion. I wonder if making possibile for the people inside the camp to be trained to welcome coming refugees (e.g.: moms helping with the arrival of next mothers in terms of understanding the needs, welcoming mothers, showing them around the camp and the area, taking contacts with the staff) and let them re-configure the camp as a collective action taken by the guests themselves to welcome better new refugees might help to overgo frustration and lack of communication. Having a daily goal -especially a shared one- might help and leaving one day the camp knowing that you did a part to make a better place of it would turn a "senseless part of my life" in a good memory of commitment and engagement.', u'entity_id': 24325, u'annotation_id': 11397, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'Alex and Tomma can of course give you a more informed view, but on the top of my head I ask myself what goes in the mind of someone who landed there and expects this to be\xa0temporary and short, only to see that days go by and turn into months. Volunteering is predicated on\xa0some sort of idle capacity - but would those trapped perceive that they have that time? with being busy to figure out their own situation and wanting to escape\xa0it.. (Alex makes the point of difficulty to engage\xa0here\xa0- fyi\xa0I very much liked the idea of going through community leaders to see what possiblilities are worth trying\xa0or not).', u'entity_id': 25129, u'annotation_id': 11396, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'I post the list in my private facebook profile. I couldn\u2019t imagine the impact of this simple action. In a few days people were coming to my place, bringing bags full of nearly everything! Friends, neighbors or strangers were coming to help. We\u2018ve been preparing backpacks and sending them to Idomeni, to the islands or anywhere they were needed. Many schools adopted the idea and soon the campaign went viral. In around 8 months, hundreds of people became mobilized and focused on helping this endless wave.', u'entity_id': 550, u'annotation_id': 11395, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u'Unfortunately, the public sentiment is negative. Mass media shape the opinion that the refugees stopped crossing borders, so people believe that they stopped coming. Others falsely believe that refugees are to blame for anything wrong. And since the beginning of the summer, most volunteers disappeared. This has, inevitably, resulted in a fatigue in the area of refugee care.', u'entity_id': 737, u'annotation_id': 11392, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u'Working days are long and filled with waiting. Long-term volunteers have to balance time considerations to get the most work done. Volunteers arrive early. UK volunteers have early Channel ferries to pack a full day in. Or the locals from Belgium and France are more balanced towards early starts. As a result the warehouse opens early with many arriving around 8am to start working.', u'entity_id': 536, u'annotation_id': 11391, u'tag_id': 2238, u'entity_type': u'post'}, {u'quote': u'However, from what I read I have the impression that this is a story about the volunteers. It is them (you!) doing all this amazing stuff. Are refugees themselvesd involved in building and staffing these services and efforts?', u'entity_id': 39333, u'annotation_id': 11650, u'tag_id': 2238, u'entity_type': u'comment'}, {u'quote': u'It\u2019s unsettling and creates some vulnerability. But in being open to the confusion and discomfort - I\xa0sense I\u2019m creating space for something new. This is my learning. I\u2019m open to being challenged by as well as offering challenges to all I\u2019m encountering - I guess this is a process of\xa0peer validation.', u'entity_id': 6462, u'annotation_id': 11403, u'tag_id': 1833, u'entity_type': u'post'}, {u'quote': u'How many people need care and are not getting it?', u'entity_id': 10261, u'annotation_id': 13109, u'tag_id': 1834, u'entity_type': u'comment'}, {u'quote': u"How Europe is punishing migrants\n\nAs hundreds of thousands of refugees have poured into Europe, some countries and regions have tried to pass legislation that specifically targets refugees and migrants. Here's a look at some of those policies that have been introduced in the last...", u'entity_id': 5545, u'annotation_id': 13108, u'tag_id': 1834, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 727, u'annotation_id': 11411, u'tag_id': 1834, u'entity_type': u'post'}, {u'quote': u"They involve people in vulnerable situations where dynamics in community connections, or lack of, play a significant role. Can Guy/Alberto's network science perspective help us to make visible and understand these social flows?", u'entity_id': 5479, u'annotation_id': 11407, u'tag_id': 1834, u'entity_type': u'post'}, {u'quote': u'Social and or health care of refugees in Europe', u'entity_id': 5479, u'annotation_id': 11406, u'tag_id': 1834, u'entity_type': u'post'}, {u'quote': u'The Danish city of Randers made it mandatory for public institutions, including cafeterias in kindergartens and day-care centers, to have pork dishes on their menus.\xa0\nStates in southern Germany can seize assets from refugees if they are worth more than 750 euros.\nSlovakia said that it will refuse entry to Muslim refugees, instead announcing that it would take in only Christians.', u'entity_id': 5545, u'annotation_id': 11405, u'tag_id': 1834, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 749, u'annotation_id': 11412, u'tag_id': 1835, u'entity_type': u'post'}, {u'quote': u'How long do they have to wait? satisfaction with the care they receive?', u'entity_id': 10261, u'annotation_id': 13110, u'tag_id': 2240, u'entity_type': u'comment'}, {u'quote': u"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment.\nAs a first contact, the university counsellor\xa0was a good help. However, the number of appointments one\xa0can have with them\xa0is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time\xa0until they\xa0find someone they feel comfortable with.\nI saw\xa0a doctor too, which did some tests to see that\xa0there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.\xa0\nWhen you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy,\xa0this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning\xa0point where you decide\xa0that something needs to happen, that you need some kind of help now, because you don't know what to do anymore,\xa0and then you are told that the next possible appointment is in 8 weeks.\xa0\nWhat am I going to do until then? Is it possible to somehow\xa0improve this process? What kinds of\xa0other temporary support structures might there be\xa0that could help\xa0people in distress?", u'entity_id': 15782, u'annotation_id': 11413, u'tag_id': 2240, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 11416, u'tag_id': 1837, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 836, u'annotation_id': 11415, u'tag_id': 1837, u'entity_type': u'post'}, {u'quote': u'- I cannot help feel strongly that more than services,\xa0people need to be themselves needed - part of their solution. Too many of the ways our societies are set up make this difficult. Margaret Wheatley said \u201cA life well lived is one in which we each find an opportunity to give our gifts rather than have our needs met.\u201d and in my experience communal spaces create more opportunities for this to happen and meet more of the spectrum of human needs that our current divided lives make possible.', u'entity_id': 23520, u'annotation_id': 11417, u'tag_id': 1838, u'entity_type': u'comment'}, {u'quote': u"Thank you @Alex Levene!\n\nThank you @Alex_Levene! Though it's temporary ceasefire, Azeris still shoot but not as much as before, now we need to wait and see...apparently there are 2 solutions out of this: full blown war or back to frozen conflict. The thing is Armenians are united against a common enemy and ready to protect their land while for Azeris this is a matter of principle - after all NKR has been a part of Azerbaijan during USSR, so they can't accept to lose it. Apparently no way to solve this conflict in a diplomatic way...maybe in a 100 years, when the rulers change and the new open-minded generation comes to power.", u'entity_id': 33780, u'annotation_id': 13111, u'tag_id': 2241, u'entity_type': u'comment'}, {u'quote': u'I\u2019m talking here about the weapons/arms markets, and other markets based on the dead bodies of other states. Especially after watching the news talking about Aleppo, Mosul \u2026 etc Cheap games to prolong the war, unlimited support for the parties of the conflict, in exchange for contracts and concessions we will know in the future.', u'entity_id': 797, u'annotation_id': 11420, u'tag_id': 2241, u'entity_type': u'post'}, {u'quote': u'Answering that question requires examining the roots of the conflict, the context in which it arose, and the factors that have kept it going. This study offers some frank evaluations of the efforts made over the years to resolve the conflict, some of which have not been discussed publicly except in the partisan narratives of one side or the other.', u'entity_id': 33808, u'annotation_id': 11419, u'tag_id': 2241, u'entity_type': u'comment'}, {u'quote': u'War is like a dirty toilet that no one wants to clean someone said...\nViolence begets violence and war is the\xa0ugliest\xa0human invention. For the past \xa04 days\xa0our lives here in Armenia have turned upside down...Things are calm in Yerevan but the situation in Nagorno-Karabakh is on everyone\'s mind. Most people know at least someone who is on the front lines, mostly 18-20 year old boys serving their mandatory 2 year service,\xa0\xa0though\xa0hundreds of volunteers and\xa0army reserve forces are joining.\nIt\u2019s hard to shift my mind\xa0and concentrate on\xa0work at all in this situation...I\'ve been idly browsing and refreshing the news\xa0(local - only official info that is of course censored, intl - absence of reaction and investigative journalism, and azeri- misleading statements and false accusations)\xa0since Saturday morning when the shootings began.\nEven though me and most of the people I know haven\'t really grasped the reality in this information blockade, this is war...this is what war looks\xa0like...and I do remember the consequences of the Karabakh conflict too well, even though I was only 6 when it\xa0started...\nFirst thing on my mind -\xa0I do not want my daugher to witness the horror we\'ve been through...second thought -\xa0Armenian\xa0and Azeri people\xa0should gather at the\xa0border in masses and have\xa0free hugs...third thought - war is inevitable, this is the reality, people too brainwashed by their governments, full of false patriotism, nationalism and machism...peacemaking failed once again...\nWe dance and send our\xa0children to fight the enemy,\xa0this is the only way...both sides consider each other agressors and feel the necessity to protect themselves/reclaim their lands....false declarations of ceasefires, provocative war crimes, rejoicing in\xa0the losses of "the enemy" just like in a football match\xa0and asking the gods to protect our boys on the frontline...and\xa0the international community that can only do\xa0so\xa0much \xa0as to "condemn" the violence...\nThoughts and prayers are not enough here. An escalation of this situation may lead to a full blown\xa0war that can set this region back for decades.\nAs I am too paralized to form my own thoughts, I\'ll just quote some of the most objective and reasonable comments I\'ve seen on the internets in the ocean of misleading and incorrect information\xa0for the past couple of days.\nWe need all the attention and help we can get to spread\xa0the message out to the world\xa0to "illustrate that an oil-rich country whose leader sucks the blood of his own people to add to his growing personal coffers, who stifles freedom of speech and thought, who imprisons human rights activists and journalists, who spews anti-Armenian hate, who refuses to negotiate from a place of integrity is not a trustworthy partner. Show the world how Turkey has vowed to support Azerbaijan till the end. Remind them of our history and tell them our story. Our story through the millennia. Our story of struggle and survival and for our right to have our place on this fragile planet." Maria Titizyan\n"The timing of these events should not be a surprise. Azerbaijan\'s economy is in terrible shape right now. Their currency dropped 40% in value against the dollar in January. Their entire economy is almost completely tied to oil and oil prices are at the lowest point in a decade. Mass protests against corruption and a depressed economy in Azerbaijan have increased in recent months. Invading Nagorno-Karabagh is an attempt to boost nationalism and act as a distraction from real problems at home. All that plus Russia\'s deteriorating relationship with Turkey, a strong political ally of Azerbaijan, creates a terrible condition for Azerbajian to act aggressively against Nagorno-Karabakh." \xa0Erik Yesayan\n"Armed with the knowledge of the history of this conflict, it is easy to discern that it is not in Artsakh\u2019s interests to break the peace and renew hostilities. Instead, it is Azerbaijan that wishes to retake control of land which, due to the political maneuvering of a third higher power, temporarily fell into its hands but over which it has no legitimate claim." Aram Hovasapyan\nRight now both sides agreed on a temporary ceasefire\xa0while Armenia\'s president is meeting OSCE in Vienna and Azeri PM is in\xa0Iran to attend a meeting with\xa0foreign ministers of Iran\xa0and Turkey...hope this will de-escalate sooner than later...\nAdditional reading:\nhttps://goo.gl/ci3lFU\nhttp://goo.gl/x4XTSJ\nhttp://goo.gl/j6jqUe\nhttp://goo.gl/1jv07R', u'entity_id': 33738, u'annotation_id': 11418, u'tag_id': 2241, u'entity_type': u'post'}, {u'quote': u'Thank you @Natalia_Skoczylas and @Alberto\n\nBeing a country often ravaged by tropical depressions and powerful cyclones I can relate with the debacles faced by @Michel. There have been a plethora of effective adatptation/mitigation measures applied in Bangladesh over the years. And gradually, we have grown quite adept at reducing vulnerabilites. Systematic risk assessment, identification of potential hazards and the placement of a tailored warning system have proven very effacious in reducing damages. However, cyclones are becoming more frequent with variable intensity - an observation supported by reliable scientific\xa0data. Although training, teaching and advising can be effective in raising awareness on survival techniques, a regionwide integrated and inclusive effort is required to truly generate meaningful impact. Please let me know how my expertise can be of further use in this case. Thanks.', u'entity_id': 20497, u'annotation_id': 13112, u'tag_id': 1840, u'entity_type': u'comment'}, {u'quote': u'What\u2019s the problem? The issues are 1. many times diapers are changed un-necessarily and 2. many times they are NOT changed at the right moment. First case is a waste of money and environmental resources. Second case is health hazard (especially for the elderly).', u'entity_id': 722, u'annotation_id': 11425, u'tag_id': 1841, u'entity_type': u'post'}, {u'quote': u'The issue was another: Waste of resources due to untimely change and lack of timely change\nNone have to do with the type of Diaper', u'entity_id': 11236, u'annotation_id': 11424, u'tag_id': 1841, u'entity_type': u'comment'}, {u'quote': u"For myself, the lessons - far and beyond the existance of institutional policies per se - are those which are carried by the people involved: civil servants or citizens directly involved in these processes. For example I remember the story about Rustavi's participatory budgeting and Revaz's enthusiasm to be involved in implementation. However, there is more to learn about the outcomes of it - for example, in Cluj where I live they ran a 3 step process starting from the neighborhood level. But it involved a lot of deliberation - as Alberto was writing above, that means showing up at neighborhood meetings (physical). They nonetheless got to testing it at the city level, but a lot of the energy got dissipated in sending in proposals to compete for online votes\xa0(>400\xa0projects)! and ending up funding very few with little money (1000 eur per winning project - about 50 of them).\xa0 I don't want to think of the amount that went into the administration of it, but you see where this goes. That was in 2014-2015, no news since, and more importantly, it's unclear whether it was considered successful or not in order to move further in an upgraded version. Anyway, this is just an example.. \xa0hope Rustavi will do much better, but also that people running it are considering risks too.", u'entity_id': 30992, u'annotation_id': 11423, u'tag_id': 1841, u'entity_type': u'comment'}, {u'quote': u'The social contract underpinning participation is often not clear. I participate, then what? What we suggest gets implemented? What we suggest gets considered? How do I know decisions have not been made beforehands, and the decision maker ris just looking for a rubberstamp? Recent example: after an online and offline consultation with 1.8\xa0million\xa0participants on Italian schools, number 1 request that emerged was to have teachers evaluated by independent experts, and not by their own headmasters. The government, nevertheless, decided to reject that request. Assuming the average participants spent two hours participating (very conservative assumption), that means the waste of 3.6 million hours. In European standards (1,732 productive hours in a year), that the equivalent of about\xa02,000 years of human work. Not cool. The social contract issue is the easiest one to fix.', u'entity_id': 30886, u'annotation_id': 11422, u'tag_id': 1841, u'entity_type': u'comment'}, {u'quote': u"(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)", u'entity_id': 10261, u'annotation_id': 11421, u'tag_id': 1841, u'entity_type': u'comment'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.\n              \n  \n  \n    \n    Edit\n    Delete\n  \nNo Commentcitizen science\n  \n    \n    Edit\n    Delete\n  \nNo Commentdesign intervention\n  \n    \n    Edit\n    Delete\n  \nNo Commentgenomic integrity\n  \n    \n    Edit\n    Delete\n  \nNo Commentmicrobes\n  \n    \n    Edit\n    Delete\n  \nNo Commentpreventative medicine\n  \n    \n    Edit\n    Delete\n  \nNo Commentprevention\n\n  \n    \n    \n      Cancel\nSave\n    \n  \nAnnotate", u'entity_id': 863, u'annotation_id': 13114, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u'Access to potable water is a severe and increasingly pressing health issue for many countries. An affordable solution for poor water quality that will improve health within developing countries.\xa0Communities will be taught how\xa0to make the\xa0filter and the purification drops - made from\xa0clay, water, saw dust and small amounts of silver. Then it will become a source of local enterprise from the sales of the filter and drops.\xa0\xa0\n\nInteresting read:\xa0http://innovatedevelopment.org/2014/05/13/the-madidrop-an-affordable-easy-to-use-water-purification-tablet\n\n\n\nAccess to potable water is a severe and increasingly pressing issue for countries in the Global South. Due to a confluence of factors including overuse, population growth and climate change, an estimated two-thirds of the world\u2019s population will be living in water-stressed areas by 2025. One recent innovation that could potentially revolutionize water purification in poor, rural communities is the MadiDrop.\n\nThe MadiDrop is a porous ceramic disc that has been infused with silver or copper. When dropped in water, the tablet releases ionic silver or copper that strips away bacteria and pathogens to produce clean, drinkable water. Each tablet is capable of treating 10 to 20 litres of water for up to six months. The result is an affordable, easily distributable and long-lasting alternative for families who lack access to a safe, potable water source.\n\nThe MadiDrop is the second water treatment technology developed by PureMadi, an organization formed by a group of interdisciplinary students from the University of Virginia. Their first project was the creation of a ceramic water filter factory in South Africa. The filters use local labour, readily available materials (clay, sawdust and water) and are treated with a dilute solution of silver nano-particles that effectively filter out common waterborne pathogens. The PureMadi ceramic filters were designed to create a cheap and sustainable point-of-use water purification solution for low-income households. To date, they have been well-received and highly effective among families in Limpopo province, South Africa.\n\nThe impetus for the MadiDrop was to apply this successful model to create an even cheaper point-of-use water treatment technology. The MadiDrop can be used in a variety of water storage containers, and at only a few dollars per drop, can provide families with purified water for an extended period of time. Lab results look promising but extensive field testing is still required to determine whether the MadiDrop is a sustainable and culturally appropriate solution. With any luck, the MadiDrop will eventually be widely used to improve clean water access and curb the spread of waterborne diseases in low-income communities.', u'entity_id': 710, u'annotation_id': 13113, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u"I hope you will get the touring exhibition to have a european leg, and come through Lausanne! \xa0To add to the previous comment, by @Natasha_Kabir, all over the world, even here in 'civilised' Switzerland, rivers need our attention and help!\n\nI left a comment with a few points this morning on the page with\xa0the documentary, but just to ask one more silly question: was it\xa0actually possible to do any fly-fishing on the Bagmati river?? \xa0(are there many fish to catch?? \xa0are they edible?) \xa0\n\nI did some flyfishing long ago in the great northwest and Montana, with great pleasure, but\xa0don't like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)...\n\nThanks again for sharing, and looking forward to further discussions!", u'entity_id': 21501, u'annotation_id': 13115, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'I am not expert with that but I believe that diet wise in rural areas in Egypt is better than the one in cities, however, the unhygienic environment and non-clean water affect their health causing disease like diarrhea and vomiting reflect later on their nutrition state.\n              \n  \n\n  \n    \n    \n      Cancel\nSave', u'entity_id': 38835, u'annotation_id': 11850, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u"Also wondering how the Muslim community in Cameroon dealing with wudu' water, check this post and tell me if you think this could be suitable to experiment and adapt in the coming science shop there ( if there is a nearby muslim community, or if that is an issue there or not )", u'entity_id': 38834, u'annotation_id': 11848, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'Csengele: has seen educational events working with environment projects \u2013 participants working with water; trying to tell students that there is another option, how we shouldn\u2019t stick to what we learn', u'entity_id': 6372, u'annotation_id': 11445, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u"hasn\u2019t been able to provide\u201d\nBased outside of Buffalo in NYC, artist, professor, flyfishing guide. Water and communities through arts projects. Worked in Kathmandu looking at the story of a river as one of the holiest bodies in Nepal. Pollution and importance. How do they come together. At OpenVillage hopes to forge links to build similar services to other groups. Making complicated issues more accessible. Bringing the stories and projects together and building a network of interest and potential clients for the same work - through exhibitions, publications, videos, documentaries.\nAt #OpenVillage he\u2019s interested to host\xa0a panel session on clean water, where invited experts speak and then open it to new people; problem is many are in Kathmandu and harder to get them to Brussels. Winnie: \u201cthere's an active subscene in DIYbio working on water quality. diy analysis methods, open source hardware. Will look up contacts in Lausanne, Switzerland\u201d", u'entity_id': 6360, u'annotation_id': 11444, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u"Bernard: Water supply - testing water. Trying to live with off grid. Reed beds. There are people working on this that we can network with. Several proposals have touched on the importance of water, there is energy to work with. or is it also more practical - like plumbing - that you're after? Winnie:\xa0some guys pretty active in the tiny houses here in Belgium. He came to us for info on a fungal filter for his water at some point", u'entity_id': 6415, u'annotation_id': 11443, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u'For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example.\nFly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments.\nWe will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings.\nThe session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms).\nAs the group will be diverse and there are multiple things to do, we\u2019ll work with a rotation, so that everyone gets to do a little of everything.\nThe session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website.\nWhat we still need for the session:\n\nPeople with fishing experience to teach casting techniques\nPeople who want to facilitate the citizen science experiments\nFishing rods and reels to borrow\nHelp with online presence\n\nAn issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!', u'entity_id': 6429, u'annotation_id': 11442, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u"First of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization\xa0in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security. \xa0The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project. \xa0Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practices.", u'entity_id': 14771, u'annotation_id': 11441, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'What I am interested in when talking about communication is how it leads\xa0to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown\xa0of Ghent is pretty bad.\nIt might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or\xa0moneywise) aspect. Your work as an artist is potentially a\xa0great help.\nHas your work on making complex issues around\xa0bodies of water acessible somehow contributed to citizen-led research?', u'entity_id': 21041, u'annotation_id': 11440, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'For the past decade, Alberto Rey has been working on site-specific art installations, websites, books and videos that examine bodies of water around the world and their relationship to social conditions. These works are complex, ambitious, and often include combinations of publications, documentaries, websites, paintings, drawings, maps, water samples with scientific data outlining their chemical breakdown and pollutants as well as images, graphs and videos from the data collection sites. Alberto will discuss ways to make complicated issues interesting and accessible to a wide audience. The lecture will also outline how this process evolved and his most recent projects in the Nepal and the United States (https://albertorey.com/site-specific-projects/).', u'entity_id': 6315, u'annotation_id': 11439, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u'@Noemi Yes, send the invitation, appreciate it. \xa0As far as this initiative, I read an article from an Environmental Engineer that was in collaboration with the University of Venda- I felt it was a fantastic initiative considering that water-related\xa0diseases kill thousands every year. \xa0Just thought it was worth sharing.\nHowever, I did read that the initiative developed substantially in the past few years. I read that they opened up two facilities in South Africa. \xa0This is as of 2016, the facility produces clay water pots infused with silver particles to disinfect the water \u2013 and provides employment for the locals\xa0and is an excellent small business model for community entrepreneurs.', u'entity_id': 15020, u'annotation_id': 11438, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'what has happened to the Bagmati River. The river is the most sacred Hindu and Buddhist river in Nepal and its banks border the holiest Hindu temples and several UNESCO heritage sites. Yet, it is the most polluted river in Nepal. The Bagmati River is also a prime example of how adversely climate change can affect a community while, at the same time, highlighting the resiliency and commitment of the residents to continue the fight to mend their river. The importance of the river to the people of Nepal and residents of Kathmandu had resulted in inspiring city-wide community events that have tried to restore the sacred waters. While their efforts are admirable and have motivated government action, little has been done to mitigate climate change causes or to adapt communities to their present conditions or to future projections. The proposed book, documentary and related programming connects the science of water quality and climate change to effects of urban migration, social norms, economics, industrial development, and government policies. The book will also investigate how the river\u2019s condition has affected religious rituals and culture. The inclusion of interviews and artwork by professional artists whose work deals with the Bagmati River will provide a unique visual perspective on Kathmandu\u2019s cultural connection to the river. While the issues investigated are specific to Nepal and the Kathmandu Valley, the general causes of the pollution, degradation of the water and its connection to climate change is reflective of many rivers and communities throughout the world.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 Through aesthetically-interesting and related imagery, maps, and graphs, we hope to provide a new perspective on the interconnectedness of science, economics, environmentalism, health issues and art as it relates to the complexities of clean accessible water and the related social issues. By understanding the interrelatedness of complicated issues in the specific local region, the audience can begin to appreciate the complexities and connectiveness of their own locality to the global community.\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0 The publication was made available in Kathmandu at no cost to the residents to assure wide dissemination of its data to a diverse communities. It also will be available in the United States and sold as a way to fund other parts of this project and future projects. A link to this finished book is available on the project website (http://www.bagmatiriverartproject.com/project-publication-2/).', u'entity_id': 576, u'annotation_id': 11437, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u'Where:\nBarcelona, Spain\nWhen:\xa02014\nWho:\xa0Mauricio Cordova\nFew lines description:\n\n\nIs it a device / software / service\n \n\nFairCap is a device produced with open source technologies.\n\xa0\n\n\nType of community involved (elders, deaf/blind/autism\u2026 disability, etc)\n \n\nThe project is designed to make drinkable water for everyone, but keeping an eye on those people (around 1 billion) who don\u2019t have access to drinkable water and therefore are characterized by premature deaths due to this reason.\n\xa0\n\n\nHow big is the community involved\n \n\nWhat is the solution proposed\n\n \n How is the project currently affecting users\u2019 life?\n  \n\n\n\nFairCap is a 3D printed filter, the instructions to build it are available to anyone and all the files are easy to download. The project is not completely developed yet, but it is currently available in its basic version. Therefore it is difficult to evaluate the effect on users\u2019s life.\n\xa0\n\n\nIs the project developed or still in the development phase?\n \n\nThe project is still in the development phase, anyone can have access to the files and improve them. The team is currently trying to design a filter for bacteria and viruses, and is trying to reduce the cost for producing it to 1$.\n\n\nAre there similar projects or attempts to solve the same problem?\n \n\nThere are several: SolarBag \xae (http://www.puralytics.com/html/solarBag.php), SOL Water (http://www.coolhunting.com/travel/sol-water-purifying-bag), Solar Water Purifier (http://3dprint.com/15917/3d-printed-water-purification/)\n\xa0\nWhy:\n\n\nHow is it open?\n\n \n What kind of license did they use to publish it? (links to documentation/repo are welcome)\n  \n\n\n\nFairCup is completely open source, available to download and released under Creative Commons licence.\n\n\n\n \n Can you clone/fork it?\n  \n\n\n\nYes\n\n\n\n \n Is it freely available?\n  \n\n\n\nThe source files are downloadable for free\n\n\n\n \n Is it affordable? (please compare)\n  \n\n\n\nThe estimated price is around 5$, currently. In the future it will be reduced to 1$. Not even comparable to existing patented and commercialized water filters.\n\n\n\n \n Is the community involved in the design process? If yes, how? (is the project offering a solution for the creator needs? Is the project offering a solution for someone close to the creator?)\n  \n\n\n\nThe founder and designer comes from Peru, he experienced in 90s a massive colera outbreak. The diffusion of diseases like colera often happens through contaminated water.\n\xa0\n\n\nHow does it \u201ccare\u201d?\n\n \n Does it solve a medical issue?\n  \n \n Does it solve a social issue?\n  \n \n Does it solve an everyday issue for a specific (disadvantaged) community? \n  \n\n\n\nYes for questions 1 and 3, it helps 3rd world countries drinking clean filtered water, giving them access to this primary good and avoiding getting viruses and diseases.\n\xa0\nLink: http://faircap.org/\nhttp://www.instructables.com/id/Open-Source-3D-Printed-Water-Filter/', u'entity_id': 33728, u'annotation_id': 11436, u'tag_id': 2429, u'entity_type': u'post'}, {u'quote': u'Thanks for your Idea @Nadia, water really Important for some people leaving on South of Madagascar. Where you \xa0need to walk around 30 to 70 km to access to the "nearest "source, It\'s about 3 times/year of raining. A place between desert and sea.', u'entity_id': 27816, u'annotation_id': 11435, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u"Before eventually tapping into desalination, it's best to do proper water management like in this example. Just let sun and rain do the desalination Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.", u'entity_id': 26958, u'annotation_id': 11434, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'The way it works is ver simple: they pierce the ground with thin funnels that "suck in" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don\'t get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.', u'entity_id': 26045, u'annotation_id': 11433, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches. The may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the "distilled" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern. Another issue is cost effective and clean transportation/distribution. There is a reason mankind mostly spread along rivers for a very long time.', u'entity_id': 25788, u'annotation_id': 11432, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'"Gaza man Fayez al-Hindi has created a small rooftop mounted device that can produce about 2.6 gallons of clean water per day"', u'entity_id': 24896, u'annotation_id': 11431, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u"I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?", u'entity_id': 23803, u'annotation_id': 11430, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'Thanks for your Idea @Nadia, water really Important for some people leaving on South of Madagascar. Where you \xa0need to walk around 30 to 70 km to access to the "nearest "source, It\'s about 3 times/year of raining. A place between desert and sea.', u'entity_id': 27816, u'annotation_id': 11429, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u"Before eventually tapping into desalination, it's best to do proper water management like in this example. Just let sun and rain do the desalination Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.", u'entity_id': 26958, u'annotation_id': 11428, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u'The way it works is ver simple: they pierce the ground with thin funnels that "suck in" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don\'t get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.', u'entity_id': 26045, u'annotation_id': 11427, u'tag_id': 2429, u'entity_type': u'comment'}, {u'quote': u"The concept of genomic integrity, basically including all the molecular genetic details of cells,\xa0was developed in about 2009 as a means to encourage public awareness of the many things we can choose to avoid doing, for our health. \xa0 Thus, prevention (to\xa0avoid health care issues) rather than actual care is my key passion. \xa0The non-profit association AGiR! Action for Genomic integrity through Research! was begun about\xa04 years ago to promote this idea. \xa0I am very interested in the open village plans for next fall, and will start with a short post as I am still looking into the best way\xa0to fit in! \xa0For instance, my experience with the AGiR! 'art call' (http://www.genomicintegrity.org/art-call) could\xa0be interesting to discuss\xa0in Alberto Rey's session, as might some\xa0microbial water sampling on Lake Geneva. \xa0We have just started a second round to see if we can replicate last summer's data: http://wiki.hackuarium.ch/w/Microto_Macro_Water_Pollution.\xa0\n\nI\xa0learned about the local biohacker group, Hackuarium, when co-organising a biosensor course in the context of the EU project BRAAVOO, and was very excited by the energy and possibilities. \xa0The big AGiR! project at Hackuarium currently is about developing open source methods to look at your own cells\xa0for DNA damage. \xa0More info can be found here:\xa0http://wiki.hackuarium.ch/w/AGiR!_for_genomic_integrity \xa0I have been hoping use of Foldscopes will be one solution to allow international networks to collect data, even perhaps using fluorescence. \xa0http://wiki.hackuarium.ch/w/Foldscope \xa0\n\nWe are also trying to design a 'cheek cell chip' for both micronucleus and comet data collection.\n\nMaybe we could do a micronucleus workshop in October? \xa0Encouraging quantitative methodology is one of the\xa0challenges around these topics.\n\nLooking forward to further discussion.", u'entity_id': 863, u'annotation_id': 13116, u'tag_id': 2244, u'entity_type': u'post'}, {u'quote': u'For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example.\nFly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments.\nWe will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings.\nThe session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms).\nAs the group will be diverse and there are multiple things to do, we\u2019ll work with a rotation, so that everyone gets to do a little of everything.\nThe session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website.\nWhat we still need for the session:\n\nPeople with fishing experience to teach casting techniques\nPeople who want to facilitate the citizen science experiments\nFishing rods and reels to borrow\nHelp with online presence\n\nAn issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!', u'entity_id': 6429, u'annotation_id': 11448, u'tag_id': 2244, u'entity_type': u'post'}, {u'quote': u'What I am interested in when talking about communication is how it leads\xa0to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown\xa0of Ghent is pretty bad.\nIt might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or\xa0moneywise) aspect. Your work as an artist is potentially a\xa0great help.\nHas your work on making complex issues around\xa0bodies of water acessible somehow contributed to citizen-led research?', u'entity_id': 21041, u'annotation_id': 11447, u'tag_id': 2244, u'entity_type': u'comment'}, {u'quote': u'@Noemi Yes, send the invitation, appreciate it. \xa0As far as this initiative, I read an article from an Environmental Engineer that was in collaboration with the University of Venda- I felt it was a fantastic initiative considering that water-related\xa0diseases kill thousands every year. \xa0Just thought it was worth sharing.\nHowever, I did read that the initiative developed substantially in the past few years. I read that they opened up two facilities in South Africa. \xa0This is as of 2016, the facility produces clay water pots infused with silver particles to disinfect the water \u2013 and provides employment for the locals\xa0and is an excellent small business model for community entrepreneurs.', u'entity_id': 15020, u'annotation_id': 11446, u'tag_id': 2244, u'entity_type': u'comment'}, {u'quote': u"hasn\u2019t been able to provide\u201d\nBased outside of Buffalo in NYC, artist, professor, flyfishing guide. Water and communities through arts projects. Worked in Kathmandu looking at the story of a river as one of the holiest bodies in Nepal. Pollution and importance. How do they come together. At OpenVillage hopes to forge links to build similar services to other groups. Making complicated issues more accessible. Bringing the stories and projects together and building a network of interest and potential clients for the same work - through exhibitions, publications, videos, documentaries.\nAt #OpenVillage he\u2019s interested to host\xa0a panel session on clean water, where invited experts speak and then open it to new people; problem is many are in Kathmandu and harder to get them to Brussels. Winnie: \u201cthere's an active subscene in DIYbio working on water quality. diy analysis methods, open source hardware. Will look up contacts in Lausanne, Switzerland\u201d", u'entity_id': 6360, u'annotation_id': 11450, u'tag_id': 1845, u'entity_type': u'post'}, {u'quote': u'For the session I will give a lecture of 40 min on making complex information accessible. It is an active session with visuals, sound and video. After the lecture, there is room for discussion. The movie about water issues at Bagmati River in Kathmandu, Nepal can also be shown, to serve as an example.\nFly fishing is another way of making environmental issues accessible. It also has educational and therapeutic value that has been used in several organizations in the United States to works with individuals recovering from breast cancer or PTSD. It is also used to get children outside and connect them to their environments.\nWe will do a demo workshop on fly fishing, involving a local school and participants of the festival can also join. The group will go to a body of water close by and learn fly fishing techniques. The fly fishing is also a way into learning about environment, physics, biology and your surroundings.\nThe session can be supplemented with citizen science research on water quality, through biotic index (measuring water quality through the type and amount of living organisms in the water) or microbiotic activity (measuring the type and amount of micro-organisms).\nAs the group will be diverse and there are multiple things to do, we\u2019ll work with a rotation, so that everyone gets to do a little of everything.\nThe session should not be limited to the festival for its impact. It would be good if this format can be reused by other schools. Communicate about it with pictures, videos, etc. beforehand, during and after so that there is a lot of documentation: a mini website.\nWhat we still need for the session:\n\nPeople with fishing experience to teach casting techniques\nPeople who want to facilitate the citizen science experiments\nFishing rods and reels to borrow\nHelp with online presence\n\nAn issue I experienced is finding opportunities to let people know that what we are doing. There will probably be others active in similar fields, so a session/workshop that creates a concrete output on this topic to take home would be nice!', u'entity_id': 6429, u'annotation_id': 11449, u'tag_id': 1845, u'entity_type': u'post'}, {u'quote': u'in North Africa systems are weak - so there has always been a cultural support; whereas in the West the system is supposed to take care of everything', u'entity_id': 790, u'annotation_id': 11451, u'tag_id': 1846, u'entity_type': u'post'}, {u'quote': u"Alzheimer\u2019s Wristband <3\n\nIdea is about helping the families of the patients who have alzheimer's at last stage. We know that people who has alzheimer's has a bad habbit of running away of house or indoors to outdoors. Idea is about prototyping a Wristband with a LCD screen which gives the patient info about their home and family members basic infos. How they love him and want to see him now... At the same time the wristband will sent info about where the patient is, \xa0what is his hearthbeat rates and how far did he goes via GPRS. We should tag the family with RFID so when they come close to the patient, Wristband recognise the family member and says calming infos and sentences to the patient in order to recognize them.\n\nWhat are the main aspects of this project?\n\nOur goal is to design a friendly wristband with an LCD monitor who works like a double agent, helps both the wandering person and the caregiver/family.\n\nHow to?\n\nWe can \n\n\n\n\nuse a CARD \n\n\nankle wearable \n\n\nwristband \n\nTechology we can use: \n\n\nGeo Fence \n\n\nArduino nano\xa0\n\n\nLCD Screen\n\n\nGPRS\xa0\n\n\nRFID\n\n\niPhone app for the family which receives notifications when the patient runs away from home\n\nStoryboard:\n\n\n\n\nFullSizeRender (1).jpg1572x1166 615 KB\n\n\n\n\n\n\n\n\n\n\nThis skecth is from our\xa0brainstorm.\xa0\n\nWhat have been done?\n\nhttp://www.medicalert.org/product/catalog/medical-ids \n\nhttp://www.alz.org/core/alzheimers-dementia-wandering.asp \n\nhttp://www.alzheimers.net/2014-02-20/technology-changes-future-of-alzheimers/\n\n\n\n\nScreen Shot 2016-09-30 at 16.30.49.png956x701 321 KB\n\n\n\n\nApps & Products on the market\n\nProject Lifesaver\n\nhttp://www.projectlifesaver.org/ \n\nProject Lifesaver International is a 501c3 nonprofit organization, the first pioneer to apply tracking technology for the search and rescue of individuals with cognitive disorders, and have remained the leader, the Gold Standard, in this field for the over 17 years. What makes our approach unique is that we have created an entire education and training program that includes; tracking techniques and technology.\n\n\n\nThe PLI-1000 Locator System is the newest radio frequency based tracking system that is available to member agencies and to caregivers of loved ones who are prone to wandering. This is the same technology that our membership uses. The PLI-1000 Personal Locator System includes: One PLI-1000 receiver with attached Yagi antenna, one nylon case, one pre-preset 216 MHz 60 day transmitter with oval case, one 9V receiver battery, six transmitter batteries, six transmitter bands, one transmitter tester, and an instructional guide. Cost to the public is $799+plus shipping.\n\nSOO EXPENSIVE\n\n\u200bGPS Smart Sole\n\nhttp://gpssmartsole.com/gpssmartsole/\n\nGPS SmartSole\xae is a smartphone hidden and sealed in an insole. It uses the same GPS and cellular technology as your smartphone, is charged like your phone, and requires activation and a data service plan. Like your phone, it works cross country within cellular network covered areas.\xa0\n\n\n\n\u200bSafe Link GPS\n\nhttp://safelinkgps.com/\n\nDependable tracking solution for wandering Dementia\n\n\n\n\n\nPocketFinder\xa0\n\nReceives GPS location data from multiple satellites. PocketFinder sends GPS location as frequently as every 2-minutes through cellular network. Cellular carrier sends encrypted data to PocketFinder servers. End-user logs in to account using smartphone, tablet, or computer. End-user can manage everything for PocketFinder using smartphone. When PocketFinder goes in or out of zone, Alert is sent to end-users via text, email, & push notification.\n\nRevolutionary Tracker\n\nhttp://www.revolutionarytracker.com/", u'entity_id': 777, u'annotation_id': 13117, u'tag_id': 2245, u'entity_type': u'post'}, {u'quote': u'In 2014 Sara\xa0Savian\xa0and Mauro Alfieri started their journey with a \u201ctest on sensors \u201cand they had presented their first prototype at the Arduino User Group & Wearables community at WeMake. The purpose for this to share projects, knowledge and create discussions on Arduino and Wearables and smart textiles.\xa0 The intent was to explore how it can be used? How can it add value and be of use socially?\xa0 What could be built on this foundation? These discussions could change the course for many participants.', u'entity_id': 861, u'annotation_id': 11457, u'tag_id': 2245, u'entity_type': u'post'}, {u'quote': u'With our prototype, we propose to make the lives of someone with parkinson\u2019s simpler. Our prototype will be wearables that can monitor the motor symptoms of the patient.\xa0Our prototype will monitor the common symptoms like tremor and stiffness in the human body, and if the symptoms are showing an uncommon behaviour, the prototype can beam the information to the smartphone to remind the patient or the caregiver to take the medicines to or to see the neurologist.', u'entity_id': 768, u'annotation_id': 11456, u'tag_id': 2245, u'entity_type': u'post'}, {u'quote': u'Well there are literature in abundance. I once worked with Ruth\xa0https://www.kcl.ac.uk/prospectus/staff/index/id/779/alpha//header_search/+/from/searchall\xa0\nAnd have some vague memories about why the thoratic region may be better\xa0\nhttp://biomch-l.isbweb.org/archive/index.php/t-7395.html\nAlso the latest siamoc 2016 conference had some interesting posters on algorithms and field data for fall detection apps that could be of inspiration.\nThe project idea looks good and it could develop into a great alternative to actigraph? @francesco Zava why dont you harvest internal experiences from the magic group?', u'entity_id': 20226, u'annotation_id': 11455, u'tag_id': 2245, u'entity_type': u'comment'}, {u'quote': u"I can see how calibrating\xa0the accelerometer 's sensitivity would be\xa0a problem. If the purpose is to detect when the wearer falls, would it maybe be better to position it near the centre of mass, rather than on a limb? I am sure you have already thought about it, I am just", u'entity_id': 7159, u'annotation_id': 11454, u'tag_id': 2245, u'entity_type': u'comment'}, {u'quote': u'yup, designing inpe as a belt accessory kind of device, is something that we investigated.\xa0 Lets see how this goes with testing.\xa0 Although, given our testing scenarios, activities like sitting down, doing to bed, would also bear risk of accuracy with the central body location.', u'entity_id': 10878, u'annotation_id': 11453, u'tag_id': 2245, u'entity_type': u'comment'}, {u'quote': u'n the current phase, Inpe, is designed as an arm band, similar to the ones runners put around their upper arms to hold their phones. \xa0\xa0It comes in two buttoned layers, where it is easy to see the inside components, tweak, and fix. The same items could be used on the leg too. For the next iteration, we would love to keep the same idea of making the inside as open and as accessible as possible.', u'entity_id': 6068, u'annotation_id': 11452, u'tag_id': 2245, u'entity_type': u'post'}, {u'quote': u"To organize webinars\xa0women can follow from home, or work,(\xa0as you know usually\xa0bullies isolated them from the world and friends) to obtain information, entrusted to others, sometimes it's a shame to talk with a close \xa0people and somewhat easier to turn to strangers...", u'entity_id': 16621, u'annotation_id': 11458, u'tag_id': 1848, u'entity_type': u'comment'}, {u'quote': u'Curve in response to the #HackOnWheels brief.\xa0\n\n\ncurve-hero-nelson-700.jpg700x1078 184 KB\n\n\nAlso are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/cheap materials/open source design)? I think it started in New York but I understand there are initiatives\xa0here in Glasgow now too.', u'entity_id': 23379, u'annotation_id': 13118, u'tag_id': 1849, u'entity_type': u'comment'}, {u'quote': u"I really like AdaptiveDesign because it's ongoing - whereas the RSA awarded ideas in initial stage. For #HackOnWheels I think the WeMake crowd in Milano could tell us if there is someone interested in making a connection with an opensource indoor wheelchair for disabled?\xa0\n@silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through\xa0mobility ramps- not indoor though..).\nOr @Gehan do you have a connection already with Adaptive Design or\xa0RSA?", u'entity_id': 24832, u'annotation_id': 11467, u'tag_id': 1849, u'entity_type': u'comment'}, {u'quote': u'Recruiting people for testing a hybrid bicycle (see here), personal experiences were confirmed: mother nature gives us ideal conditions (Milano, Italy) such as sun, no wind and flat terrain. We are however trapped because private motor transport rules the roads and scares us. Are you a wheelchair user, mother/father with baby carriage, cyclist or pedestrian then you have a handicap. Traffic is dangerous and public transport is prohibitive\u2026.unless you already know your way. If you just use Google maps o Here maps for navigation you will be trapped.', u'entity_id': 779, u'annotation_id': 11466, u'tag_id': 1849, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 14204, u'annotation_id': 11460, u'tag_id': 1849, u'entity_type': u'comment'}, {u'quote': u'If you are paralyzed, you are most likely using a wheelchair, and if you use a wheelchair, then you need someone to push the wheelchair in order to help you navigate through the city. \xa0\xa0Not only does this make the challenged person feel like a burden, but it adds another layer of inconvenience, which is privacy. \xa0\xa0\xa0Due to the nature of how most wheelchairs are designed, the person who aids the person who needs care, has to accompany this person everywhere, limiting the chances of being able to navigate the city or any place independently while enjoying privacy and a little independence. \xa0The challenge gets worse in places like train stations, airports, metro stations, basically any place with stairs, an over crowded, and the requirement of different modes of motion. \xa0Would it be possible to think of a mechanical system that can be attached to all \u201cstandard\u201d wheelchairs, \xa0that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits? \xa0\xa0Any thoughts?', u'entity_id': 689, u'annotation_id': 11459, u'tag_id': 1849, u'entity_type': u'post'}, {u'quote': u'for instance- the ramp \u201cbell\u201d to call who is inside the shop, is mentioned only once on the website of the Municipality and is an important part needed to communicate between the customer, that might be someone who needs to access by a wheelchair, or a mother with a baby buggy.', u'entity_id': 850, u'annotation_id': 11465, u'tag_id': 1849, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 6321, u'annotation_id': 11464, u'tag_id': 1849, u'entity_type': u'post'}, {u'quote': u'Though wheelchairs not my speciality I have seen several solutions presented by scholars. For example:;\xa0Stairclimbing see:http://portale.siva.it/en-GB/databases/products/isoSearch?classification=122315 (so the NHS\xa0offers zero)\nIn theory its simple:\xa0https://www.youtube.com/watch?v=ik286spRM1w\nwhy dont you just buy one of these?\xa0https://www.youtube.com/watch?v=AaZLoUYXDSs or\xa0https://www.youtube.com/watch?v=O7otewMk9pc\n( I actually saw one on the street the other day) Who dares hack a segway? And who dares using it?', u'entity_id': 26020, u'annotation_id': 11463, u'tag_id': 1849, u'entity_type': u'comment'}, {u'quote': u"@Moushira, with 'Would it be possible to think of a mechanical system that can be attached to all \u201cstandard\u201d wheelchairs, \xa0that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits? '\nyou ask for the stars, but if we realize the WeHandU, i'ts about what you ask. You join in with an idea for a solution/someone has a proposal, together we realize. You test the solution and you are happy , U reiterate improvements or abandon. Most important: We and U\xa0document opensource the result of the work for others to build on.\nIt's not the stars but wouldn't it be getting you to the moon be good enough\xa0?", u'entity_id': 23367, u'annotation_id': 11462, u'tag_id': 1849, u'entity_type': u'comment'}, {u'quote': u'The approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point:\n"wheelchair" = "no"\nWhereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects ("nodes" or "ways") in OpenStreetMap rather than to coordinates.\xa0The results are stored as a layer\xa0in a CSV file on the city\'s open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer:\xa0http://umap.openstreetmap.fr/it/map/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15/40.3509/18.1826\xa0\nThis was done by the wonderful @piersoft and fellow citizens.', u'entity_id': 19845, u'annotation_id': 11461, u'tag_id': 1849, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 23134, u'annotation_id': 11468, u'tag_id': 1850, u'entity_type': u'comment'}, {u'quote': u'Important concepts for care (therefore to include into storytelling practice):\n\n\n\n Communion\n\n\n\n\n Compassion\n\n\n\n\n Self-care\n\n\n\n\n Awareness\n\n\n\n\n Why you help and whether you are more helped yourself.', u'entity_id': 5405, u'annotation_id': 11470, u'tag_id': 1851, u'entity_type': u'post'}, {u'quote': u'Idea of expectations from a particular context: only support certain things in certain circumstances. You only want to care about certain things at certain times so there is the question of:\n\n\nTiming\nContext when shared?', u'entity_id': 5405, u'annotation_id': 11469, u'tag_id': 1851, u'entity_type': u'post'}, {u'quote': u'Before reading these, I was thinking about how creative fields and other\xa0professions, like sports, have some similar stress sources, and this was confirmed and explained by the superstar economy theory.', u'entity_id': 32270, u'annotation_id': 11477, u'tag_id': 1853, u'entity_type': u'comment'}, {u'quote': u"Tentative conclusion. Maybe it's not creativity that is stressful: it's the characteristics of winner-takes-it-all\xa0labor markets, including the one\xa0for\xa0artists. Implications: hard call. I fully appreciate that being creative in your spare time is limiting. But so is being poor, scared and stressed out. My own choice was relatively easy, given that I was obviously no artistic genius, and other things interested me just as much as music: I got the hell out of it after making it to midlevel (gold record in a secondary market such as Italy), but not to stardom", u'entity_id': 32197, u'annotation_id': 11476, u'tag_id': 1853, u'entity_type': u'comment'}, {u'quote': u'Another key point in artists\u2019 lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.', u'entity_id': 32092, u'annotation_id': 11475, u'tag_id': 1853, u'entity_type': u'comment'}, {u'quote': u"Trained as an economist, having been a professional musician for several years in the 1990s, I looked up economic literature about the arts. The intuition most relevant to your point (and the whole thread) is this: art is defined by economies of scale in consumption. It works like this. Imagine you like classic two guitars-bass-drums rock music. Well, that technology scales really well: you can enjoy a rock concert in a bar with an audience of 30 people, or in a football stadium with an audience of 80,000. The costs of giving a concert increases in the size of the audience, but much slower than the ticket revenues. If you double your audience, your profit does not double: it goes up fourfold, or even tenfold, depends on where you start. Markets with these characteristics are called winner-takes-it-all: they produce few superstars, with everyone else doing badly (Rosen's classic 1981 paper). While stars tend to be very talented people, it is simple to build a model that takes performers with\xa0identical\xa0characteristics, and then makes one or a few of them superstars, and discards the others. Initial lucky breaks are reinforced by the success-breeds-success dynamics. We need a hairdresser every ten blocks, because people go to different hairdressers. But very few stars, because we all watch/listen to/read the\xa0same\xa0ones.", u'entity_id': 32197, u'annotation_id': 11474, u'tag_id': 1853, u'entity_type': u'comment'}, {u'quote': u'women', u'entity_id': 39328, u'annotation_id': 11659, u'tag_id': 1854, u'entity_type': u'post'}, {u'quote': u"All of my studying and experiences encouraged me to learn more about the world we live in, particularly its population, demographic trends, societies, economies, cultures and the environment .With a growing interest in issues such as migration, climate change, environmental degradation and social cohesion, the present is a perfect time to be involved in a subject that literally touches everybody. We also must know and understand the characteristics of the population and problems. Gender Equality is an issue that increasingly attracting attention and I'm glad that it is so, because we have to face with problems in intention to solve. Especially in the Balkans because of the tradition, male dominance and patriarchy dogma, we can`t even speak about gender equality. Violence against women is a common phenomenon, discrimination in employment, obtaining dismissal due to pregnancy, sexual harassment at work, on the street, not to mention the Roma communities, where women have almost no rights, the situation is bad, and even alarming.\nWomen are treated as less valuable, challenging their basic human rights. The right to education, freedom of movement, the right to vote, the right to decide about their marriage, not to be forced, mutilated or rejected by family, society if they do not abide by traditional rules and norms, teen marriage, teen pregnancy, violence against a woman, more often situation.\nThe violence being perpetrated against girls and women it takes on epidemic proportions.\nAnd instead of every day a woman to be given more heed, honored, a pillar of society and the family, it is at the margin, not only neglected but also abused, physically and mentally exhausted,, without the right to fight for themselves ,their \xa0life, their well-being.\nWomen who are the most oppressed are precisely those without education, personal income . How many women and girls were sexually exploited, raped ...\nWhat are the primary tasks?\n\xa0To be primarily pledge any form of violence and abuse, to provide education, training. Selection of partners is free will, the right to contraception, the right to health care, the right to equal pay, the right to be employed, not to be discriminated just because it's a woman, it does not get fired when she went on maternity leave, to receive compensation while pregnant, the right to social protection, in health insurance and care.\nThe right to engage in politics of his country, to participate in the economy, not only as a worker, but also as an entrepreneur, manager, trustee\nTo be more women in science, the arts, that were not created just to take care of home, children, family, that are free to read, write, engage in teachings, scientific research\u2026.\nMany seem that women seek the impossible, seek the same thing does not belong to them. Women do not seek a special status, not seeking privileges.\nWomen \xa0demand the respect that every human being deserves, looking for the opportunity to be the best version of yourself, achieve talents, looking for an opportunity to live freely, go towards achieving its objectives without fear that they will be attacked, abuse, put down, ridiculed\u2026 crippled\nMany studies have shown the importance of women in large companies and how important it is to have greater participation of women in the labor,\xa0The whole society has benefits and profit from that, also\xa0economic empowerment of women can give them the strength and the power to fight for their rights.\xa0What is I have to emphasis\xa0totally crazy, to fight for something that is obvious and should be guaranteed.\xa0But since we live in such a country and such a world, which I will say freely that's gone completely crazy.\nThe first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have\xa0to forget that terrible sentence, you're a girl, you you have to let go, you have to listen, \xa0you must be good,\xa0obedient\nWell, \xa0you do not have to do anything\nBe good and obedient and you'll be good and obedient patients\nIf you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default, \xa0you can be scientist, pilot, astroanut, everything you want\nOf course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing, \xa0to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and \xa0works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable\xa0and smart and successful women, because obviously while men are leding,\xa0we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give\xa0positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is \xa0always something wrong , they have to be perfect to be loved because they are \xa0upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie\xa0and \xa0to be good...\nIt is a great theme, and very serious and \xa0requires indispensable\xa0large and big steps to make the change, so we\xa0won't\xa0any more\xa0read about dark statistics or to be a part of it,\nI forgot about inadequate or not existing\xa0 health status of women and treating them, how horrible gynecologist acting,\xa0a large number of cancers that are not detected at time, shame, \xa0when they\xa0give birth listen insults and so on...\n\xa0I want you to understant situation in my country, importance of the problem and that action is needed, that will not be easy, but it is something that must do\xa0because it is not a choice any more it is our obligation.", u'entity_id': 858, u'annotation_id': 11478, u'tag_id': 1854, u'entity_type': u'post'}, {u'quote': u'A hoarder of bits of thinking and half formed disruptive thoughts with occasional bouts of fundamentalism about things that should be simple. Lives in Glasgow, Scotland where she co-founded the\xa0GalGael Trust , an organisation which provides learning experiences anchored in practical activities that offer purpose and meaning.', u'entity_id': 6356, u'annotation_id': 11479, u'tag_id': 1855, u'entity_type': u'post'}, {u'quote': u'I really enjoyed reading this article and I find familiar to me some\xa0of your influences (the Tumblr users, I\u2019ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don\u2019t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this \u2013 like I am).\nThanks for sharing this and good luck with it! What are the next "challanges" going to consist of? Let me know if you need a young girl\u2019s opinion. I\u2019m really interested into this subject and I would like to give some help.', u'entity_id': 14581, u'annotation_id': 11480, u'tag_id': 1856, u'entity_type': u'comment'}, {u'quote': u'I think the work you are doing is great. I am an anthropologist who studies young people\'s practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm).\n\nIt strikes me that the language of "shit happens" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all.\n\nIt would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!', u'entity_id': 24338, u'annotation_id': 11483, u'tag_id': 1857, u'entity_type': u'comment'}, {u'quote': u"You guys have a very interesting list of perks for those willing to experience distress, kudos.\nSo you want to raise awareness about serious issues through\xa0humor, or a lighthearted\xa0approach. I'm guessing there is a difference to be made in approaching awareness this way versus advocating for mental\xa0support\xa0through humor. For the latter: does\xa0(self)\xa0irony\xa0help\xa0embrace\xa0the shitiness of one's situation? hm, not sure.", u'entity_id': 9367, u'annotation_id': 11482, u'tag_id': 1857, u'entity_type': u'comment'}, {u'quote': u'I do not know much firsthand about depression and mental discomfort (lucky me). But I have heard that positive messages are not uplifting on depressed people, on the contrary. If you have doubts about when and how much to be humorous, you could look around for research about the matter. I am sure there must be loads, though I myself cannot think of anything...', u'entity_id': 12669, u'annotation_id': 11481, u'tag_id': 1857, u'entity_type': u'comment'}, {u'quote': u'I am part of the golden foot collective. we took a mobile independent footcare clinic\xa0and cinema\xa0from scotland to italy and serbia. \xa0To help in the migrant crisis. there were\xa08 of us and we had 2 nurses and 2 mechanics. everyone had done\xa0some international migrant solidarity before. This was a process of upscaling what we were doing. dispite many obsticale.\xa0 it all worked well. \xa0since Then i have been increasingly intrested in best practice. how do we get people to operate well in high stress enviroments?', u'entity_id': 860, u'annotation_id': 11484, u'tag_id': 1858, u'entity_type': u'post'}, {u'quote': u'To establish local governance through local\xa0economic development\xa0and implementation of project in partnership with local government stakeholders and village-based institutions.', u'entity_id': 855, u'annotation_id': 11486, u'tag_id': 1859, u'entity_type': u'post'}, {u'quote': u"Roles & responsibilities\nAll interesting insights on which to build. Another\xa0area that is opening up through these conversations starts to re-evaluate\xa0the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.\xa0\nA number of threads of\xa0conversation\xa0touched on this issue of responsibility. @Alberto\xa0referenced the Amish refusal of health insurance on the grounds that it \u2018de-responsibilises\u2019 people. Conversation with Wendy Ball explored her recent intervention in a street fight and how \u2018externalising responsibility\u2019 for care creates dependency on state responses -\xa0turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.", u'entity_id': 6462, u'annotation_id': 11499, u'tag_id': 1860, u'entity_type': u'post'}, {u'quote': u"All interesting insights on which to build. Another\xa0area that is opening up through these conversations starts to re-evaluate\xa0the relationship between citizens and the State. State care responses are dependent on and delivered by institutions designed and built in a different era and on a different world view. Consideration of citizen-led care responses will take us into a process of renegotiating the roles and responsibilities of the citizen and the state.\xa0\nA number of threads of\xa0conversation\xa0touched on this issue of responsibility. @Alberto\xa0referenced the Amish refusal of health insurance on the grounds that it \u2018de-responsibilises\u2019 people. Conversation with Wendy Ball explored her recent intervention in a street fight and how \u2018externalising responsibility\u2019 for care creates dependency on state responses -\xa0turning us into passive subjects. This lack of agency can become crippling and is a symptom of how 'de-responsibilised' we've become.", u'entity_id': 6462, u'annotation_id': 11498, u'tag_id': 1860, u'entity_type': u'post'}, {u'quote': u'Definitely think the time is ripe for new approaches, and also that a new willingness to try these is developing on the part of CCGs, healthcare trusts and local councils. Hopefully this will extend to national government, and they will allow local solutions to develop from the ground up. They are doing so in other health sectors, so there is hope. The CQC - given its very specific mandate and structure - may be another issue! But we can but try!', u'entity_id': 31537, u'annotation_id': 11493, u'tag_id': 1860, u'entity_type': u'comment'}, {u'quote': u'Shows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.', u'entity_id': 29077, u'annotation_id': 11492, u'tag_id': 1860, u'entity_type': u'comment'}, {u'quote': u"Because the role of\xa0administrations keeps popping up in many conversations in opencare, with the city of Milano we are now launching a campaign to understand how well meaning public servants and their office can collaborate,\xa0support or even set up better regulations endorsing community projects like yours and the others we know. Would you be interested in participating with a story? We could do it like this - organising a chat where you meet @Franca who's part of the\xa0Milan\xa0team, and other edgeryders\xa0who are interested in this. And then we put together in writing the most interesting\xa0ideas from that chat. I'm happy to join you.", u'entity_id': 18586, u'annotation_id': 11491, u'tag_id': 1860, u'entity_type': u'comment'}, {u'quote': u'More than 1/5 of donations is unsuitable for the refugees, thus is channeled to other vulnerable groups directly or in cooperation with already existing structures.', u'entity_id': 550, u'annotation_id': 11490, u'tag_id': 1860, u'entity_type': u'post'}, {u'quote': u'What is required is a way of feeding the experiences and innovation prototyped by the improvised,\xa0citizen-led organisation\xa0into the institutional learning of\xa0NGOs', u'entity_id': 19227, u'annotation_id': 11489, u'tag_id': 1860, u'entity_type': u'comment'}, {u'quote': u'institutions', u'entity_id': 29958, u'annotation_id': 11488, u'tag_id': 1860, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30317, u'annotation_id': 11487, u'tag_id': 1860, u'entity_type': u'comment'}, {u'quote': u'Capacity building\xa0through\xa0provision of trainings and inputs for sustainable development of the flood effected people.\nTo establish local governance through local\xa0economic development\xa0and implementation of project in partnership with local government stakeholders and village-based institutions.', u'entity_id': 855, u'annotation_id': 11497, u'tag_id': 1860, u'entity_type': u'post'}, {u'quote': u'How to work with institutions?', u'entity_id': 6439, u'annotation_id': 11496, u'tag_id': 1860, u'entity_type': u'post'}, {u'quote': u'A participant even talked about how power be embedded in institutions when it comes to filling forms to satisfy some requirements and how institutions make things difficult.', u'entity_id': 850, u'annotation_id': 11495, u'tag_id': 1860, u'entity_type': u'post'}, {u'quote': u'The Trojan Lab and the volunteers from the Living streets are now helping the local government to think about and rethink how Living Streets would look like without the role of the Trojan Lab. What\u2019s in it for the city administration: it involves bringing different public stakeholders together with those who have participated from the streets, to think how it can continue in the upcoming years. Are you also dreaming of a living street? Share your stories with the pioneers of Ghent.', u'entity_id': 33746, u'annotation_id': 11494, u'tag_id': 1860, u'entity_type': u'post'}, {u'quote': u'To establish local governance through local\xa0economic development\xa0and implementation of project in partnership with local government stakeholders and village-based institutions.', u'entity_id': 855, u'annotation_id': 11511, u'tag_id': 1861, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 31152, u'annotation_id': 11510, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30612, u'annotation_id': 11509, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'How do you coordinate with local government and politicians?\nWe are usually working with long term community-based partners. Ideally, organizations who already work\xa0with the local government. At some point, we want the local government to take over our mobile tools; the goal is always for the ministry to take over. We also sit on advisory committees and advise national eHealth and mHealth strategy in many of the countries where we work. We are committed to sustainable use of our tools. For that, we have to work hand in hand with local and national governments.', u'entity_id': 564, u'annotation_id': 11508, u'tag_id': 1861, u'entity_type': u'post'}, {u'quote': u"Good point on the organizations @Noemi.\xa0I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there.\xa0Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It's clear that they don't have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?", u'entity_id': 11841, u'annotation_id': 11507, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'Shows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.', u'entity_id': 29077, u'annotation_id': 11506, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'Definitely suggest a test case and liaising with local CGCs / councils... The sector is very heavily regulated by CQC (Care Quality Commission), and the mandatory requirements are quite intense in terms of staff training & numbers, facilities, type of care offered, activities, care planning, health & safety (including prevention of infection - limiting doing "funky" things with premises, unless one works really hard), etc.', u'entity_id': 26047, u'annotation_id': 11505, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'Because the role of\xa0administrations keeps popping up in many conversations in opencare, with the city of Milano we are now launching a campaign to understand how well meaning public servants and their office can collaborate,\xa0support or even set up better regulations endorsing community projects like yours and the others we know. Would you be interested in participating with a story? We could do it like this - organising a chat where you meet', u'entity_id': 18586, u'annotation_id': 11504, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'I wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the "professional care & aid circus" can dock into, and many of the respective group\'s fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.', u'entity_id': 13504, u'annotation_id': 11503, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 30317, u'annotation_id': 11502, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'create relationships with such institutions who can and are doing that good work, but that we will continue to straddle the line of revolution', u'entity_id': 29958, u'annotation_id': 11501, u'tag_id': 1861, u'entity_type': u'comment'}, {u'quote': u'The aforementioned pushed the Politecnico University to challange itself asking \u201chow can our student transitional community and residents develop positive interactions and give new life to the district?\u201d.\n\nThis is what the course \u2013 PSSD 2017 Networks of Care Collaborative encounters in/around the Bovisa campus \u2013 is about.\n\nEzio Manzini and Liat Rogel, with Susanna De Besi wanted this to be the focus of their students\u2019 work for this year. And they suggested the students to interact with the edgeryders community as their works progress.\n\nToday introduction ended with the following questions to students:\n\nReferring to your everyday interactions with Bovisa, when are you in need for care? \xa0And when are you willing to provide care to somebody else?\n\n@Ezio_Manzini @Social_Open_Campus @Rossana_Torri @Liat @Social_Open_Campus', u'entity_id': 832, u'annotation_id': 13119, u'tag_id': 1862, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 30614, u'annotation_id': 13120, u'tag_id': 1862, u'entity_type': u'comment'}, {u'quote': u'@silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through\xa0mobility ramps- not indoor though..).', u'entity_id': 24832, u'annotation_id': 11520, u'tag_id': 1862, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 575, u'annotation_id': 11519, u'tag_id': 1862, u'entity_type': u'post'}, {u'quote': u'Firstly, many supermarkets in the Uk have charity partners in the local community. They hold them for 3-4 months each. Every shopper who spends over a set amount (i think it is \xa320) is given a small plastic token. They are then encouraged to drop these tokens into a box by the main doors, selecting one of the 3 charities to recieve their donation.', u'entity_id': 24694, u'annotation_id': 11518, u'tag_id': 1862, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 833, u'annotation_id': 11517, u'tag_id': 1862, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 29086, u'annotation_id': 11516, u'tag_id': 1862, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 27829, u'annotation_id': 11515, u'tag_id': 1862, u'entity_type': u'comment'}, {u'quote': u'The Trojan Lab and the volunteers from the Living streets are now helping the local government to think about and rethink how Living Streets would look like without the role of the Trojan Lab. What\u2019s in it for the city administration: it involves bringing different public stakeholders together with those who have participated from the streets, to think how it can continue in the upcoming years. Are you also dreaming of a living street? Share your stories with the pioneers of Ghent.', u'entity_id': 33746, u'annotation_id': 11514, u'tag_id': 1862, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 529, u'annotation_id': 11513, u'tag_id': 1862, u'entity_type': u'post'}, {u'quote': u'C. a documentary video will document the project and include interviews with water quality and health professionals, community members as well a policy maker in Kathmandu. Songs by traditional Nepalese folk singers are incorporated throughout the video including a commissioned song about the Bagmati River. A link to this finished documentary is available on this website.\nD. a brochure and poster written in Nepalese will also provide important accessible scientific and health data about the river. The poster and brochures will be distributed to the communities that live along the entire length of the river in Nepal. Members of the Bagmati River Expedition 2015 team, who created a comprehensive report about the river\u2019s water quality, microinvertebrates, avian population and plastics data, have already established connections in these communities. We are working with Sujan Chitrakar and his graphic design students in designing the posters and brochures. Sujan is the Academic Program Coordinator and an Assistant Professor for Kathmandu University\u2019s School of Art, Center for Art and Design.', u'entity_id': 752, u'annotation_id': 11512, u'tag_id': 1862, u'entity_type': u'post'}, {u'quote': u'Very interesting, @Rossana_Torri . You offer us a glimpse into how policy makers think: we do things in a certain way, ("hybridization between food trading, restaurants, entertainment, paying particular attention to the quality and fairness of the products"), but this project goes beyond that ("virtuous link between economic value and social impact"). Since the political and administrative are favourable ("after the administrative reorganization in Milan in June 2016 with a new mayor"), we will try to have more people doing more projects like yours ("we can reasonably expect that new opportunities and grants aimed at develop and scale such initiatives will be provided").', u'entity_id': 17226, u'annotation_id': 13121, u'tag_id': 2248, u'entity_type': u'comment'}, {u'quote': u'Forging alliances with city governments. Show that production at city scale is feasible and show that economic implications they have can be addressed. Eg. problem of people going to emergency rooms, which is a cost for the city, so open source insulin would make the hospital work better.', u'entity_id': 38856, u'annotation_id': 11874, u'tag_id': 2248, u'entity_type': u'post'}, {u'quote': u'Following up on policy making panel/group. Wrote to person in Milano, waiting for reply. See how they would like to approach the session. Case of mobility ramps (co-design with citizens). Is there something specifically we can do with civil servants around the table?', u'entity_id': 6435, u'annotation_id': 11530, u'tag_id': 2248, u'entity_type': u'post'}, {u'quote': u"To bring the campaign to reality, a part of that plan involves talking to the civil society and involving them. Therefore, we are in touch with mayor\u2019s office to propose an idea to tell the citizens, if they plants 5 trees, they'll get a discount on their TAX. The CEO\u2019s of top notch companies to take part in this initiative where we want them to initiate a tree plantation program as a part of their CSR activities. Encourage their employees to plant trees so that they can get a better record at the end of the year in the ACR. We've asked the Headmasters of local schools to run the campaign along with the students, whoever plants more trees and takes care of them properly, will get an excellence award & certificate from the school. Recently our PM received the award of CHAMPION of the Earth for her outstanding initiative on\xa0increasing forests and going green. I am simply trying to follow her path to make a change. Because I believe, OXYGEN is the most needed thing on earth and one can not simply buy a healthy environment with money. It takes proper plan and interest to create a land full of trees and a lot of patient. I got inspired by watching BHUTAN be the very", u'entity_id': 848, u'annotation_id': 11529, u'tag_id': 2248, u'entity_type': u'post'}, {u'quote': u'From a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently\xa0demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.', u'entity_id': 7852, u'annotation_id': 11528, u'tag_id': 2248, u'entity_type': u'comment'}, {u'quote': u'It seems to me that the initiatives, such as BIDs, should, in fact, be initiated by the city itself - and whenever I speak with the politicians, they understand it but resources and knowledge bases are at times limited. It can be challenging when systems and organizations need to change, understand and adopt design thinking themselves in order to be open for such initiatives and collaborations between private, public and citizens. The concept and ideas can appear too complicated, too political, too new and disruptive, yet many cities around the world are seeing the value this can bring.', u'entity_id': 716, u'annotation_id': 11527, u'tag_id': 2248, u'entity_type': u'post'}, {u'quote': u"s seen encouraging results after talking to her mayor, and right now she's trying to create a youth platform for citizenship and sports - an IDEO design type of commune.", u'entity_id': 541, u'annotation_id': 11526, u'tag_id': 2248, u'entity_type': u'post'}, {u'quote': u'One part of the story I don\'t understand is: where does the transformative muscle come from? The arena you describe was made of 20 people. That\'s not a large number, certainly not large enough, in and of itself, to secure legitimacy. And yet, you guys were able to wield real influence, with the city giving you permission to try things out. How did this happen? Did you have a "bureaucrat hacker" in the administration championing you?', u'entity_id': 33762, u'annotation_id': 11525, u'tag_id': 2248, u'entity_type': u'comment'}, {u'quote': u'identified,\xa0that needed to be made to achieve that vision. \u201cHard choices\u201d they called them: two of them were the basis for the Living Street project. So:\n1) The arena had the vision\n2)\xa0They determined some critical hard choices, policy making decisions\n3)\xa0At that point the arena had developed about 10 ideas for how this can be put in practice. Living Streets was one of these ideas.\nPieter: \u201cAfter 6 months we pitched these ideas and while the city\u2019s work was done at the time, we didn\u2019t feel we were done. I will always remember that night. These 20 people sat in a bar and said \u201chow can we make our ideas real\u201d. That\u2019s how it all started.\u201d', u'entity_id': 33746, u'annotation_id': 11524, u'tag_id': 2248, u'entity_type': u'post'}, {u'quote': u"It is often the ambition of projects to serve as an example for others to be inspired. Do we need to move up a level; is the example a government needs, one of another government trying a new way of governing, rather than an example of people doing something differently (eg. elderly care). The latter would be 'just a policy decision', the former would be 'the way in which policy decisions are\xa0made' and perhaps more relatable to a government?", u'entity_id': 28735, u'annotation_id': 11523, u'tag_id': 2248, u'entity_type': u'comment'}, {u'quote': u"Winnie i know what you are discribing, with my years of activism i had\xa0mostly the same kind of experience \xa0with policy makers in Brussels. Getting funds is tricky because you need to behave a certain way because 'they' have the power in hand, you have to calculate who is going to get the portefieulle in next couple of years and so on.\xa0\nBut a couple of days ago a kind of epiphany came accross. In fact like what edgeryders does on care, we can create locally on any topic, creating an easy swarm of projects that can become a lever to not wait till policy is written, but to shape what it is going to be without having to play the political game. We are going to do this exercice with the Brussels makers scene through the FabCity platform of Barcelona. Bringing projects towards organisations and spaces and coordinating these spaces to communicate as one about their needs towards politics. In such way that we don't have the proposal from politics: let's just build 170 fablabs for 2020, but that through the swarm of knowledge know what are really the necesities.\xa0\n\nHope i could contribute to this nice debate;", u'entity_id': 29073, u'annotation_id': 11522, u'tag_id': 2248, u'entity_type': u'comment'}, {u'quote': u"My own experience:\xa0I contacted the city anyway a few months back. I mailed with the responsible politician and she directed me to the civil servant at the bottom of the 'food chain'. We met, she was impressed by our project and clearly wanted to help. She promised me to take the message back up the food chain, but assured me it would take a while, and keep me updated along the way. The department got restructured, so this was slowing things down.\xa0Fast forward 2 months, no news, and our project is already in a different stage. Time flows differently for the government,\xa0I hope people\xa0age\xa0slower as a perk for working there.", u'entity_id': 28966, u'annotation_id': 11521, u'tag_id': 2248, u'entity_type': u'comment'}, {u'quote': u'I especially like the idea of talking to private companies - where I come from in Romania, I have many friends working in corporate environments who would like to volunteer more, or get their colleagues to volunteer more - and they dont have a fun way to do it, together (better than\xa0on their own..). Their thinking is: why dont we talk to management to convince them to give us 2 hours once a month to go out on a set cause. A good person to "make the case" and convince management\xa0in the company is the employee representative - who understands volunteering but also the interests of the company and knows how to fra', u'entity_id': 18447, u'annotation_id': 11531, u'tag_id': 1864, u'entity_type': u'comment'}, {u'quote': u'I\'d like to share an experience about resilient community practices. Last year I organized a series of meetings in Utrecht, The Netherlands. First they were about Free living and money, later they were about freedom and transforming trauma\'s through awareness as I felt a desire to treat a more direct approach about individual transformation. I call these meetings "Circles of openness".\xa0\n\nSome of the meetings were extremely fruitful and transformative. Others were okay and sometimes a bit boring. What determined the quality of the meetings was the openess and willingness to share from an honest and authentic place, and to really be curious to share what feels exciting and challenging to someone. During the meetings where the mayority of the participants was willing to listen and feel into what\'s relevant at that time, there was a magical openness and connection among the group. I truly enjoyed these meetings and they were one of the most beautiful shared moments of my life. What I also enjoyed is the power to transform through awareness. By expressing a doubt or a challenge and openly looking at it, it became possible to take distance from the perspective and let go of it. Also the awareness of the group seemed to stimulate and hold space for sharing these vulnerable perspectives.\xa0\n\nWhat didn\'t work so well was:\n\n\nwhen people spoke in general terms and theoretically/ hypothetically without really feeling the question.\xa0\nwhen people didn\'t really want to be there\n\n\nWhat did work well was:\xa0\n\n\nsharing from your own experience\nlistening and asking questions to explore the perspective\nholding space: being open to the perspective without taking it personally, listening with from an open space\nusing a talking stick, so one could speak at the time.\xa0\na good host and facilitator who\'s comfortable with (almost) everything and ready to set some guidelines, such as: speaking from the heart, speaking from your personal experience, no interuptions and the talking stick.\xa0\n\n\nIn my experience these circles of openness help build relationships of trust and create a vital space for transformation.\xa0\n\nLet me know if you want to find out more. I\'m playing with the idea to organize new "Circles of openness" over the next months.\xa0\n\nThanks for reading!\n\nWarm regards,\xa0\n\nEwoud\n\n@Noemi you might find this interesting!', u'entity_id': 6401, u'annotation_id': 13122, u'tag_id': 2249, u'entity_type': u'post'}, {u'quote': u'All would then call for how-to innovation workshops, for others to learn how to do it. They also host organisations/ events to make temporary use of the space, and encourage deeper exchange: permaculture meetings would teach everyone new practices, while experimenting on the Nieklitz land. Like most skilled communities I have seen, the boundaries between those who host and those who cross their path are purposefully blurred.', u'entity_id': 36387, u'annotation_id': 11702, u'tag_id': 2249, u'entity_type': u'post'}, {u'quote': u'ACTIVITIES TO BE CARRIED OUT BY THE PARTICIPANT\nBefore\nParticipants will receive a list of study material prior to their arrival for the seminar along with the links for the websites which are relevant to the content of the course.\nDuring\nThe course will provide theory necessary to understand the nature of stress as well as practical tools for managing stress and difficult emotions. Attention will be given on how to implement the findings and skills in real life situations after the seminar.\nMethods such as debate, role play, body movement, individual mind management technologies, pair and group exercises and mini -coaching will be used throughout the course.\nThe methodology of the course includes learner \u2013 centered approach and utilizes self-learning methods.\nThe aim of the course is not to produce ready-made solutions (passive learning), but to inspire the participants to search creatively for knowledge and effective solutions which are connected with their needs and challenges (active learning). In this way the participants take responsibility for their own learning process and act as active partners of the course.\nAfter\nThe participants will be encouraged to form a network in order to continue an exchange of ideas and support one another. Up to 6 months after completion of the workshop, the participants will have an opportunity to ask for advice (via email or Skype) if they face obstacles in using the new skills or if they have any questions or concerns.', u'entity_id': 6293, u'annotation_id': 11543, u'tag_id': 2249, u'entity_type': u'post'}, {u'quote': u"I see your point - the different (concrete and meta) levels for going about a session on care depend a lot on where participants come from. I think they are both valuable and there is a lot of flexibility in the format - from project demos to open\xa0conversations, to actual explorative/work sessions.\n1) the more concrete and detailed ones\xa0would definitely benefit from curation to ask questions above the project's worthy\xa0achievements.\xa0\n\xa02) the more meta and patterns discussions could use curation to get to a solid framing where others could plug in. A very useful example from a past event is a session which was prepared ahead like a collection of viewpoints on how communities organise around and steward material assets - people would be reporting from their own experiences, but coordinated ahead so that the facilitator could see how they fit into each other. There is\xa0documentation from it.", u'entity_id': 17635, u'annotation_id': 11542, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'All seem necessary. In your experience of running these events in the past - is there a useful way\xa0to work on multiple levels - perhaps reflecting them in the programming but also how the event/learning/outcomes are captured?', u'entity_id': 15609, u'annotation_id': 11541, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'I have never been part of such a group with such speedy process of opening up - even when deep conversations arise, we had been traversing a sort of coolness, then sociality, then friendliness, and more and more into deeper discussions. That stood for both personal and professional contexts; for both one on one conversations and group conversations.\xa0How do you go through this curve collectively, and\xa0so quickly, is probably really an art.\nAre we talking one day workshops?\nFamiliar faces or strangers?\nAnd how large a group is optimal?\nThanks @ewoudvenema for sharing so generously.', u'entity_id': 21318, u'annotation_id': 11540, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'As facilitators, the openrampette team walked around to help and suggest to the participants how to tackle certain details. A load of pictures was taken around to witness the session. By my side, I was interested in taking pictures as well, even though my perspective was different, more focused on how the session was enacted and how a intersubjective level could emerge from and by the interaction of actors.', u'entity_id': 850, u'annotation_id': 11539, u'tag_id': 2249, u'entity_type': u'post'}, {u'quote': u'Hi @dfko ! Thanks for posting your session proposal draft. Your remarks about information sharing and organization connect with me, not only because being part of the international Open Insulin collab. Also because when talking to people in several open and participatory science projects over the last year, the same questions keep popping up.\nPerhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects?\nAn outcome of this workshop could be a framework you can readily use in the project, and that others can use for their projects.\nThe other part of the session can be you sharing experiences, outcomes or anything you think is worth telling.\xa0\nWhat do you think?', u'entity_id': 7889, u'annotation_id': 11538, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'What do you think about\xa0interactive workshops, psychologists, educators and sociologists playing with children so they can\xa0 adopt essential ideas that no one should mistreat them, that they should report any form of violence, when they grow up won`t allowe\xa0bad behavior in the name of\xa0love, oppression or degrading treatment from society or be abuse and suffer because they are poor?', u'entity_id': 16621, u'annotation_id': 11537, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u"Winnie was telling me that this is\xa0accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:\n\n\xa0you can demonstrate diy science and how it contributes to increasing health awareness and care\n\xa0you demonstrate its openness, how communities take it on board and learn, then teach others etc.", u'entity_id': 17617, u'annotation_id': 11536, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'I think a micronucleus workshop would be cool :-). Off the top of my head in ReaGent we have a binocular lab microscope, some Foldscopes and\xa0some variations of this model (both with bought lenses and self-made ones). Plenty of glassware & staining products as well. What would you need exactly for the\xa0workshop?\nWe can also do a microbial analysis combined with the fly fishing demo by @albertorey . We also have the equipment and might as well when we are at a river!\nAnother proposal\xa0by @Nabeel_p was also related to public engagement and communicating science through art. How could be combine these insights?', u'entity_id': 16325, u'annotation_id': 11535, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 542, u'annotation_id': 11534, u'tag_id': 2249, u'entity_type': u'post'}, {u'quote': u'There was distress tolerance, learning how to improve coping skills, groups range in\xa0diverse areas.\xa0 Workshops were topical with a therapeutic focus and the students realized they were helping each other. Encouraging open and frank discussions while getting to the core. As a psychology student, we started a group with the focus of awareness of mental health and resilience (it started as a project) For students by students -showing support is beneficial to manage the inevitable ups and downs and the resources available. \xa0Mental wellness was brought into the light \u2013 which it\u2019s ok to talk about it. From there the students that were not really \u201cinterested\u201d took another look at the options available with a different perspective.', u'entity_id': 27824, u'annotation_id': 11533, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11214, u'annotation_id': 11532, u'tag_id': 2249, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 847, u'annotation_id': 11544, u'tag_id': 1866, u'entity_type': u'post'}, {u'quote': u'During the preparation for the tour I have realised there is a big interest in the topic already - people really want to know more about trauma. I\u2019ve already taken a step towards promoting awareness and dealing with the problem - I wrote a book about trauma last year. The book became quite popular, and it\u2019s now being translated from Dutch to English. It will be available in January, and it is based on common licence, along with the exercises included. This decision is based on my view that psychological knowledge, and therapeutical knowledge, are all based on dozens of years of collective practice and wisdom accumulated which should be available to everyone without limitations, certifications, individualisation...', u'entity_id': 740, u'annotation_id': 11545, u'tag_id': 1867, u'entity_type': u'post'}, {u'quote': u'Undisclosed content', u'entity_id': 847, u'annotation_id': 11546, u'tag_id': 1868, u'entity_type': u'post'}, {u'quote': u'More than 1/5 of donations is unsuitable for the refugees, thus is channeled to other vulnerable groups directly or in cooperation with already existing structures.', u'entity_id': 550, u'annotation_id': 11547, u'tag_id': 1869, u'entity_type': u'post'}, {u'quote': u'I just spent a few good days near Nieklitz (Germany) in a gathering organized by Open State, the professional camp builders who built POC21 and Refugee Open Cities. The camp, funded by Advocate Europe, offered a rare occasion to 30 something activists to slow down and reflect on our work; with yoga, meditation, ecstatic dance intermissions (sic!), and no hard commitment to produce an artefact by the end. One could wander and ponder about whether pairing people with radically different political worldviews changes their civic behavior, but also chat about good apps for practicing mindfulness (I hear it\u2019s Headspace).', u'entity_id': 36387, u'annotation_id': 11694, u'tag_id': 1870, u'entity_type': u'post'}, {u'quote': u"Yes, that's it. Taking it further though, would be to create rural/nature situations where healthcare professionals can rejuvinate and connect with people from different professions. And yoga, nature based activity and arts for teens in rural settings. There is already a will for this to happen from For\xf3ige, as a means to curtail troubeld behaviours. ..and the elderly, we especially need alternative services as our elderly population grows.", u'entity_id': 18305, u'annotation_id': 11550, u'tag_id': 1870, u'entity_type': u'comment'}, {u'quote': u'at "Our Place" event we brought yoga by Green Lotus Galway (GLG) and circus workshops for kids by Hoopla Troupla\xa0 (social inclusion in a socio-economically disadvantaged area).\nat What Now? A Cultural Weekender, there was Yoga by GLG (50% of donations went to familycarers.ie), mandala making by Cos\xe1in (community wellness group) and teen open-mike by For\xf3ige, tribal dancing, reclaimed pallet furniture as part of design exhibition and much more. We\'ll be revamping our website in time and a fuller picture of that will appear.\nat preMonastery (report on website soon), which itself was semi-retreat in nature, yoga and mental wellbeing featured. A preliminary looks at the feedback forms suggests positive effects wellness of participants. Outcomes from preMon include a collaboration between Cos\xe1in and Pais\xfain F\xe1isuin, where they ran an event and raised \u20ac1440.\xa0 And Cos\xe1in doing an art therapy retreat in 2 weeks with Alan, our host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources.\nA\xc1E originated as an arts group but has been looking at culture in the broader sense, integrating health and physical environment/ecological sustainability. A\xc1E\'s arts reviews and events are key to engagement, facillitating connection of groups and situations of care at local level.\xa0 And celebration:) David\'s statement is from June 2015, it starts with arts, then evolution:)', u'entity_id': 14308, u'annotation_id': 11549, u'tag_id': 1870, u'entity_type': u'comment'}, {u'quote': u'at "Our Place" event we brought yoga by Green Lotus Galway (GLG) and circus workshops for kids by Hoopla Troupla\xa0 (social inclusion in a socio-economically disadvantaged area).', u'entity_id': 14308, u'annotation_id': 11548, u'tag_id': 1870, u'entity_type': u'comment'}, {u'quote': u'Exactly the same point about young men not being catered to was made by @Alex_Levene in the context of The Jungle. We have been fantasizing about "emergent" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.', u'entity_id': 16195, u'annotation_id': 13123, u'tag_id': 2250, u'entity_type': u'comment'}, {u'quote': u"We (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out.\nHow is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men.", u'entity_id': 26014, u'annotation_id': 11554, u'tag_id': 2250, u'entity_type': u'comment'}, {u'quote': u'Most\xa0projects for refugees\xa0are designed to specifically help the arriving families, children and the single travelling women; but the majority of refugees is barely taken care of in the same\xa0manner: the young men.\xa0It is an illogical equation: The young male refugees are often regarded as healthy and fit,\xa0able to work and therefore are not treated as a priority in terms of care. However; of what\xa0use could these benefits be if there is nothing to do? In Germany, refugees are not allowed\xa0to pick proper work for the first three months of their stay. After that period, a working\xa0permit is needed to apply for a job. The permit, however, is only granted if the person is no\xa0longer living in a refugee camp. Needless to say, the said three months often pass without\xa0anything really happening and three months slowly turn into six months and into a year\xa0- during which there is nothing to do.', u'entity_id': 703, u'annotation_id': 11552, u'tag_id': 2250, u'entity_type': u'post'}, {u'quote': u'young men', u'entity_id': 39328, u'annotation_id': 11657, u'tag_id': 2250, u'entity_type': u'post'}, {u'quote': u"The first thing we have to teach girls, because some things are taught from childhood, that the slap is not love, that no one have right to beat you, there is no reason to be afraid. You have\xa0to forget that terrible sentence, you're a girl, you you have to let go, you have to listen, \xa0you must be good,\xa0obedient\nWell, \xa0you do not have to do anything\nBe good and obedient and you'll be good and obedient patients\nIf you're a girl, you do not have to do anything that you do not like, house, kids, kitchen, It is not your job by default, \xa0you can be scientist, pilot, astroanut, everything you want\nOf course, a question of love, partners, children, number of children, or abortion, should be your choice, initiation of sex and number of partners is also your thing, \xa0to love, to be loved, free, jealousy is not proof of love, respect and friendship are very important, you have a right to do what you want when you want and not worry about social norms, because only happy persone have good thoughts and \xa0works good, Society where women are sitting home and deal with the housework is dead. We need all the strengths and capable\xa0and smart and successful women, because obviously while men are leding,\xa0we can not talk about peace and prosperity, we should agree to disagree, to respect and appreciate each to give\xa0positive example because children learn from their parents, scattered on the model, so change must start from family, parents, environment, kindergartens, schools ... this is serious story , a wide and large, but the success is guaranteed if we work together, jointly, it is not enough to have a law that sanctioned violence, because in every segment of society and at every step of women suffer some form of discrimination, some form of abuse, violence, really suffer if they are young and pretty, and if they are ugly and old, have always been the subject of ridicule, gossip, and never good enough and ther is \xa0always something wrong , they have to be perfect to be loved because they are \xa0upbringing in that manner, it is a huge burden, that burden must be rejected, it's okay to be imperfect it's okay to have a bad day, to smilie\xa0and \xa0to be good...\nIt is a great theme, and very serious and \xa0requires indispensable\xa0large and big steps to make the change, so we\xa0won't\xa0any more\xa0read about dark statistics or to be a part of it,\nI forgot about inadequate or not existing\xa0 health status of women and treating them, how horrible gynecologist acting,\xa0a large number of cancers that are not detected at time, shame, \xa0when they\xa0give birth listen insults and so on...", u'entity_id': 858, u'annotation_id': 11556, u'tag_id': 1872, u'entity_type': u'post'}, {u'quote': u'In Cameroon, parent children discussion on sex education is a taboo. When ever an adolescent brings up a topic around \xa0reproductive health or sex \xa0education, they are usually severely punished \xa0and regarded as been disrespectful to their elders. Due to this absence of discussion on sex education, many adolescent young girls face lots of challenges and stigma at their puberty stage, especially during menstruation.Most parents in Cameroon especially in the rural and grassroots areas, don\'t know that they have to provide pads for their girl children during menstruation. They don\'t even give their girls advice when these children even summon a little courage to inform them that something abnormal is happening with them .According to many parents, these children are very immature and still very young to be able to handle understand and process issues on puberty , reproductive health and menstruation. Because of this lack of discussion between parents and children on sex education, many of these girls, during menstruation are forced to stay away from school because of stigma from boys who often notice blood stains on their uniforms and also the unpleasant odor which \xa0cames out of the bodies as a result. \xa0Their staying away from school, makes them not to be performant as they ought to be like the boys and this plays a key role for their poor performances. Some stay away for two weeks and others for a month, just to avoid this stigma. As a youth advocate to encourage parent children dialogue on sex education and advoacting for Access to reproductive health knowledge, i have had time to hold some trainings with a few groups of adolescent girls to tell me about their experiences. \xa0As a result of lack of menstrual hygiene, due to absence of \xa0dialogue between them and their parents, \xa0i was amazed by the stories i got. Some said, as they approached their parents \xa0when\xa0they noticed boold stains on their pants, they were thoroughly scolded and driven away and warned never to discuss any thing on menstruation. Some said, they were forced to carry dry dust and sand to\xa0insert into their vaginas in order to stop the bleeding as they knew not what was happening to them. Other stories came up like using \xa0dirty clothes to pad themselves, which was very in hygienic and gave them some genital infections. \xa0As a result of this lack of knowledge on reproductive health for adolescent girls, many have dropped out of school because of unintended pregnancies, some have contracted sexually transmissable infections and others have been forced into early marriages , to the boys that impregnated them. Many of these \xa0adolecents have lost hope for a better future, because they are now in condtions due to necglect and lack of reproductive health knowledge. \xa0so i am hoping to enlightened parents and the community about the importance of sex education and also advocating for this curriculum to be taught in primary and secondary schools in Cameroon. I am hoping, to equally train these adolescent girls on matters of gender equality, menstrual hygiene , family planning and reproductive health as a Whole. In Africa, there is an ardage which says "Charity begins at home" if \xa0discussions between parents and children are initiated at home on sex education, it will go an extra mile to enable parents understand their daughters and support them effectively , so that they will not be statistics of unwanted pregnancies , school drop outs and poor academic performance in school. If Access to knowledge on reproductive health is improved upon \xa0for parents and adolescent girls, then sustainable development will be ensured. I believe that women and girls form an essential link in sustainable development.', u'entity_id': 849, u'annotation_id': 11555, u'tag_id': 1872, u'entity_type': u'post'}, {u'quote': u'Csengele: heard about OpenVillage from the Internet, isnt sure. Student at Waldorf school, "I\xa0don\u2019t work in health\xa0field. In the last year I organized an int\u2019l youth conference for graduates" \u2013 the topic was \u201chow can we create a new world\u201d? How can we see the system that we are now in, step out from highschools, and how to make a change?\u201d\n-How Banks are working and whats the difference with ethical banks;\n-How can we build up communities? \u201cI\u2019m in a gap year\u201d', u'entity_id': 6372, u'annotation_id': 11581, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'In relation to what i bring on to the open village festival, i intend to lay out the underlying reasons why we have a lot of youths engaged in drug abuse in africa and its social-economical effects of developing-world countries.\ni would to demonistrate the importance strong communities towards combating the drug menace and eventually creating awereness with views eradication of the drug menace.\nradicalisation is spreading fast among drug users who are easy targets for terrorist activities in the coastal city of Mombasa.if we are at aposition of curbing the issue at hand, then we will be able to address the global effects of terrorism.which not only affects us in Kenya but now a major issue in Europe, middle east and the USA.\nwe hope to grow a strong network out of the presentation at the festival so as to broaden our scope of understanding and welcome some experts in social-counseling who may helps in rehabilitating these youth into leading productive lives within the communiting.\napproach of presentation\n\nthe presentation may include brief videos and statistical data to show the scale of damage.\ngroup discussions and presentation(which may require representatives of each team presenting their finding to attendees)\nslides hence i may require :\n\n\nprojector\nwhite board\nmakers\n\nNOTE : the presentation may take 30-45 minutes\nat the festival i hope to learn more on collaboration and experiences in europe which may help us advance our urge to transform our local communities to provition of global solution to our local challenges.', u'entity_id': 6407, u'annotation_id': 11580, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u"Anyway I was reminded of the Museum of the Future that another connection who's expertise lies in scenario planning around the future of health...\xa0\xa0he's\xa0used MoF\xa0in helping people to imagine the future - I think he did this with young people for a project we were involved in a few years ago. I wondered whether that might make for an interesting session that gets away from simple 'downloading' good info and purely presentation based formats? I'm due to meet up with him soon - I'll ask him what would be involved...", u'entity_id': 23963, u'annotation_id': 11579, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices \xa0and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing \xa0plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that \xa0expose girls and women to violence \xa0and \xa0HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com\nI will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.", u'entity_id': 24949, u'annotation_id': 11578, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u'I think, i could easily work with finr artists to talk about reproductive health and other issues of rpime concern to young people.\nThank you', u'entity_id': 11273, u'annotation_id': 11577, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u'Great name, and some very nice art. \xa0In looking at your page in FB I also saw a link to the "Youthopia" \xa0https://www.youthopiabangla.org/index.php# which presents a lot of promising opprtunities as well as a number of meetups and get-togethers. \xa0It\'s great to see this going on. \xa0I agree that it is well worth the time to investigate and understand all of it better.', u'entity_id': 21180, u'annotation_id': 11576, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 847, u'annotation_id': 11575, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u"https://vimeo.com/186163072\xa0(Youth video focused on CVD) and\xa0https://vimeo.com/190529779\xa0(video developed by youth, elder populaton and Scientists collectively). Note that the youth developed a collaborative video and the adult population of the participants developed the Photovoice publication. We aimed to explore CVD from different generation's perspectives using differing tools. The adult population are community members that have kids or grandkids and have to consider them when purchasing, consuming or disposing of food, whereas the youth group were youth aged 18 - 28 that do not have to consider others when purchasing, consuming or disposing of food. If anyone is interested I'd be keen to write up a post and post or email persons copies of the Photobook.", u'entity_id': 33803, u'annotation_id': 11574, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 506, u'annotation_id': 11573, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u". I'm planning to concentrate on specific target groups - besides the regular social innovation aspect, there will also be the social inclusion of elderly, youth, special needs people and on ways in which we can involve them and make them feel more as a part of the community. There is a plan for the pilot version to be launched in September in my own community in Brussels, Koekelberg, in collaboration with the municipality. We will address the project to both 300 businesses of this district and 3 other neighboring districts.", u'entity_id': 716, u'annotation_id': 11572, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'@Noemi\xa0The program was for all students. As far as what was the \u201ccrossover\u201d there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone\u2019s inquiry. Which made the students in control of the situation.\xa0 Which is always of value.', u'entity_id': 27824, u'annotation_id': 11571, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u'On another note, at university, they had \u201cprograms\u201d in place and designed to enhance the student\u2019s life, as @Sharon\xa0mentioned young adults can be very hard on themselves.\xa0 Aided in concerns or problems such as a feeling of low self-esteem, anxiety, depression and academic concerns.', u'entity_id': 26061, u'annotation_id': 11570, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u"Our challenge is to rewire neighbourhoods to take care of teenagers tending to the specific needs of their age, addressing the formation of social emotions, vocation and self knowledge.\nEurope's population decline must be addressed not only regarding maternity and natural population decrease, but also promoting the dynamic and innovative qualities the younger generations always contribute to society. Making young people relevant, inviting them to our social life, giving them a frame to belong in a European future is the necessary counterbalance for our aging and shrinking population.\nThe rate of cultural change linked to technology has been constantly increasing and initiatives to educate our people must overcome institutional slowing down, if our societies are to participate significantly in the future.\nEducation, learning & the value of teenagers\nTraditional educational systems are failing to take social changes into account. The inertia of national states behind educational institutions is failing to answer to the reality of communities that are experiencing social change at a faster than ever rate. The future we imagine cannot be reached following old pathways.\nTeenagers are left out of social life, with no appropriate spaces or other activities expected from them, apart from attending compulsory school until an age that keeps rising as the human life cycle prospers. In a phase of life characterized by passion and vocation, loads of energy and bluntness, teenagers in Europe find themselves institutionalized and irrelevant.\n\xabFuture Tools\xbb project is an acknowledgment of the value teenagers have for society: they hold our future in their hands. \xabFuture Tools\xbb is a space designed with caring attention to fit the needs of our young generation, aiming to connect them to a new world of opportunities by inviting them to work, to collaborate, to participate and to have a voice in their own community. We can now apply our knowledge about adolescence to provide a comprehensive environment in which teenagers can develop healthy social emotions, autonomous and egalitarian participation.\nProvide an alternative to corporate uses of technology through the culture of the commons; spread collaborative habits in neighborhoods; build activities rooted in intrinsic motivation that bloom in communal benefit are some of the ways \xabFuture Tools\xbb will engage people in fostering a society with greater equality, solidarity and sustainability.\n\xabFuture Tools\xbb is a common learning lab for teenagers. By offering youngster a place to gather and pursue their interests while promoting their autonomy, we aim to empower them to work for a better future. Sharing resources and interests in an alternative learning space, the culture of collaboration and the democratizing possibilities of technology, this place will have its roots in the neighborhood\u2019s daily activities and funnel the parents\u2019 interest in social promotion for their kids towards a more inclusive society.\nThe abundance of open resources that can be freely accessed through personal learning environments to learn digital skills \u2014such as computational thinking, governance software, UX design, in fact any skills that we may need to implement our projects in the world\u2014 is an opportunity, never known before to such a widespread extent, to empower our youngsters to build a better future.\nNeighboring environment\nThe neighborhood as a community comes to relevance in the task of \xabhelping grow adults\xbb. The age group that most closely matches the Secondary Education stage in our culture has in the neighborhood its spatial range of freedom, just one step away from the wide world they will live in as adults. Connecting these neighboring communities to the global emergence of the digital culture as makers and participants through their own teenagers is a pertinent, strengthening link between local and broader communities.\nIt is urgent for these generations of parents and offspring to leap forward over institutional stagnancy and give ourselves the shared resources we can provide for our own borough, in every neighborhood, nurturing our tribe-prone teens from the gang to the team, by building around them the common ground for community.\nIt is sometimes sad hear stating that what is being promoted for innovation in the field of education \u2014on the basis of empathic personal exchange, attention to the tempo, sensibility for intrinsic motivations, in short: the wisdom of caring for each other\u2014 are outdated methodologies. Digital tools offers a new breeze to these methodologies, an opportunity to enhance the soft aspects of learning and allow us to cast aside production-line techniques when it comes to our kids: lecturing, memorizing, exams, ringing bell schedules, curriculums and subjects. We can now afford those luxuries our industrialized schools didn't plan for and, dragged by institutional inertia, won't anytime soon.", u'entity_id': 796, u'annotation_id': 11569, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'USER INTERVIEWS\nThe issue of mental health is especially important in the context of youth. Young adults are increasingly affected by issues like anxiety or depression. Their circumstances make them particularly susceptible to psychological stress. As many leave the familiar framework of home and school and move into an uncertain future, the newly independents have to find alternative support structures. New living situations, potentially in a new city or even country, starting university or a job, all these developments entail a multitude of mental pressures. In a time where social media is so influential, standards of self-representation are an added factor. According to one of the psychological guidance counsellors at Studentenwerk Berlin; stress, loneliness and self-image issues are very common results among many students.\nAs part of our research, we interviewed several university students from different backgrounds about negative emotions like these. One question was how they handle situations of feeling sad, stressed or lonely. The main insight was that everyone experienced this shit, but no one liked to deal with it. A prominent theme in the conversations was the difficulty to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder. It was mentioned\xa0that it was easier for them to open up to someone who had similar problems and could empathize. However, it is difficult to identify the people that can offer support\xa0when everyone tries to hide their struggles.\nAs a result, most people\xa0don\u2019t decide to seek help until they had been in increasing pain for a prolonged amount of time. Yet at this point of outreach, recovery is still far. As we learned from our interviews, it can take months to find care that is suitable to the individual and more months to see any progress. While there is a great spectrum of available options, the general idea of psychological treatment is still stigmatized. It is often not even perceived as a possible solution. The psychologists we interviewed mentioned that many of their patients came to them only after being referred by a general practitioner or friends who had tried therapy themselves.\nYet, we cannot force people to seek help. Keeping quiet about insecurities is a justified mental defence mechanism. When we share our feelings, we are vulnerable, exposed. Oftentimes, the recipient is simply not equipped to offer a good, empathic response. This could almost be described as a societal incompetence,\xa0stemming from a general lack of awareness.', u'entity_id': 511, u'annotation_id': 11568, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u"It's left me wondering how widely your experience is shared by people in Ireland - to what degree the economic situation over the last decade has eroded people's ability to cope, or woken people up to the need for solidarity and community, or just caused (young) people to leave the country, and how that feels to those who still live there.", u'entity_id': 15313, u'annotation_id': 11567, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 11421, u'annotation_id': 11566, u'tag_id': 1873, u'entity_type': u'comment'}, {u'quote': u'Undisclosed content', u'entity_id': 1438, u'annotation_id': 11563, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'While continuing to work with clothes, I now focus on providing school items for children and the campaign has shifted focus. From just catering for refugees, we also provide care for native homeless people. Through a Facebook page https://www.facebook.com/groups/519478964902645/, we are trying to organize volunteers who adopt the schooling needs/items of children in need. These needs may be covered through a donation of items or money, and this is open to everyone. So far, the stock gathered so far through donations, is enough for about 250 kids. In parallel, I am organizing seminars and crash courses on repairing clothes and upcycling old objects to create, for example, pencil boxes.', u'entity_id': 737, u'annotation_id': 11562, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'The kids have been a strong \u201cglue\u201d among the family with kids and others, who became kind of uncles, grandpas or grandmas. And a topic of discussion for the other ones.', u'entity_id': 743, u'annotation_id': 11561, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u"We talked about how younger people can be a connector, how it needs a connector...there are many of us who want to engage but don't because the connection is needed and doesn\u2019t happen without being designed. When travelling connecting is very easy, but in your own town you rarely have deep conversations with people you don\u2019t know. Openness as a mindset is very interesting to see how society is structured n our head. How this huge fear that comes out of nowhere. Media says you should have fear now, that the new is threatening. I love my Grandma but when it comes to this topic I think omg we should not even talk about this topic and I have no idea how to change things. I think it\u2019s a lot of empathy, we had a huge fight...it was all about him not letting what\u2019s happen...not wanting to feel it...keeping it theoretical. The next day there was a change of perspective. It\u2019s also overwhelming for many people, related to make yourself vulnerable and allowing yourself to feel. It\u2019s a very delicate and sensitive how to do this contact and get them in touch with their feelings.\u201d", u'entity_id': 494, u'annotation_id': 11560, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'Local staff of opencare (Comune di Milano and WeMake) meets some parents of boys and girls with different abilities', u'entity_id': 5490, u'annotation_id': 11558, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'Where do young people go to when they grief? Do they cry alone in their bedrooms? Do they logon to the internet? How do young people in grief find each other? Do they phone a friend? Do they enter a counselling centre? Do they search through hashtags and websites?\n\nDeath has never been more public than in the age of the internet. Alongside waves of #RIP[insertcelebrity] tributes and #[nameofvictim] police shooting activism proliferating on social media are viral posts of everyday people approaching grief and documenting their experience on the internet: recounting a person\u2019s final days, parting words and gratitude from the deathbed, captures of assisted suicide and \u201cright to die parties\u201d, and families commemorating the deceased.\nThese experiences of death and loss have been augmented and prolonged with the growth of social media use. More specifically, the ways in which a social media platform is structured and the dominant culture of its users has allowed people in grief to process their loss in innovative ways \u2013 new spaces of affect are created, new paralanguage vocabularies are innovated, and new transient networks of care are formulated.\nResearch has emerged in various disciplines focusing on internet memorial pages (in which the deceased and/or their funeral is commemorated on a public page), digital altars and graves (in which the living pay respects to the dead via technological mediations), afterlife digital estate management (in which the transfer and privacy of internet artifacts belonging to the deceased are negotiated), and even RIP trolling (in which trolls hijack Facebook memorial pages with abusive content). There is even an academic journal and a handful of institutes dedicated to \u201cDeath Studies\u201d.\nFor instance, monuments.com enables clients to personalize cemetery headstones with a QR code. By scanning the QR code with a smartphone, users are led to an interactive website where they may upload images and text of well wishes to the deceased and their family, or contribute to building their family heritage through stories or family trees. Users are also able to re-share their post on more mainstream social media.\nAs an anthropologist and ethnographer of digital culture, I have a comprehensive understanding of such practices. But when my younger sister passed away earlier this year, the ways in which her friends expressed and managed their grief in digital spaces led me to discover a rich repertoire of coping mechanisms, exchange of affect, and mutual aftercare in a vernacular created by young people who grew up with the internet - these really moved my heart and encouraged me to examine young people and grief in digital spaces.\nBut\xa0just what is mutual aftercare? Often after a global grieving event such as large-scale natural disasters or spates of violence, strangers would gather in public spaces that transform into transient sites of solidarity. With candles, flowers, and written tributes in tow, strangers come together to process their grief, share their grief, and lend support to those in grief. Bodies who are not familiar with each other are motivated by the immediate, tangible, and tactile presence of other bodies in an enclosed space to disperse emotions they would usually restraint, and dispense care they would usually withhold when the group\u2019s motivations are briefly aligned. Sociologist Emile Durkheim refers to this as \u201ccollective effervescence\u201d. This is \u2018aftercare\u2019, or the care one offers to others after a hurtful experience. When people come together to publicly acknowledge their pain and simultaneously offer care and concern to fellow others in pain, this becomes a network of \u2018mutual aftercare\u2019. Young people seem to be doing similar things in digital spaces, and I wanted to find out how.\n*\nBeing a young person in my mid-twenties for whom the internet and social media is second nature, I seamlessly took to my blog to make sense of my grief and loss. I wrote about my experiences of \u201cholding space\u201d for my sister in her final days (see also Heather Plett), and about learning to declutter physical artifacts despite my abstract emotional attachment to these things. I also wrote about how I felt when Facebook friends began \u201cdeep-liking\u201d my old posts on grief and how it impeded my progress and recovery. As much as I felt hurt and disappointed by these peers, I could not justify my anger knowing that digital etiquette is not universal \u2013 knowing how to approach someone in grief on social media or how to express grief on social media is not actually \u201ccommon sense\u201d. Digital etiquette varies across personal beliefs and cultural norms, and is highly dependent on the context of interpersonal relationships and the norms of a social media platform. In other words, digital etiquette surrounding grief has to be taught, learnt, and practiced.\nI was both a young person managing grief in digital spaces and an ethnographer invested in understanding everyday practices through intimate anthropological inquiry. To do this, I conducted personal interviews with young people who self-reported using digital media (i.e. the internet, social media, devices and artifacts, non-analogue spaces) to manage their grief. I started with friends in my sister\u2019s social groups, made open calls to undergraduates in local universities, and amassed informants via snowball sampling.\nI wanted to understand what young people did on the internet to recover and how this differed from analogue coping mechanisms pre-social media. I wanted to learn how they constructed solidarity, conveyed empathy, and maintained networks of mutual aftercare. Some also showed me their smartphone apps so that I could study how they crafted content, ranging from emotive Instagram captions of meaningful photographs to extensive digital catalogues of every tactile item the deceased has ever touched.\nI learnt that a vocabulary of grief was quietly emerging among young people. For instance, emoji and emoticons were especially significant as a paralanguage. Some reported that \u201cwhen words fail\u201d, or when they \u201chad no strength\u201d to craft responses back to friends who had sent them condolences, they would mobilize emoji or emoticons to acknowledge receipt, demonstrate reciprocity, or express gratitude. One person who had lost his father to a critical illness said that while \u201cthe adults\u201d in his family did not seem to articulate their grief and loss to each other (\u201cthey strictly never said anything about it in the house\u201d), those in his generation such as his cousins took to Facebook to comfort each other via status updates and follow-up comments. Another young person began a groupchat on the messaging app WhatsApp and recruited friends of the deceased from all walks of life into the chat. They used the groupchat as a semi-private outlet to share their thoughts without having to worry about self-censorship \u2013 many of them felt Facebook was \u201ctoo public\u201d, that email was \u201ctoo impersonal\u201d, and that meeting in person was \u201ctoo soon\u201d, \u201ctoo painful\u201d, or \u201ctoo awkward\u201d. As such, the space of a groupchat accorded them the freedom to process grief more transparently among empathetic others in a safe space; the groupchat became a space of mutual aftercare.\n*\nThe need to understand young people\u2019s grief in digital spaces became clearer to me as I began consulting and conversing with healthcare professionals in palliative care. One hospice nurse expressed that as a patient approaches their end of life, most family members would single-heartedly focus all their effort and affect on that one person. Upon the death of their loved one, many people are suddenly hit with grief all at once and are unable to transit into care for each other, or \u201ccare for the living\u201d. In other words, despite social workers and counsellors preaching the value of \u201ccare chains\u201d, many people who are deep in grief simply do not have the mental capacity and physical resources to plan for self-care or mutual aftercare.\nAnother doctor reported seeing an increasing number of young patients in their late teens or early-to-mid twenties. Sorrowfully recounting a memorable incident in which her young patient instructed her to post a specifically-worded status update on his Facebook after death, she came to realize that young people deeply valued their digital estates as platforms to communicate gratitude and farewells even on their deathbed. In a handful of other instances, young patients requested for their doctors and counsellors to add them on Facebook or to read their blog in order to access sentiment they felt incapable of articulating in person, in physical spaces, via traditional media\nDespite the very crucial work that such palliative staff engage in, much of this work is negotiated ad hoc on-the-go as they \u201cplay by ear\u201d. Most staff do \u201cwhat feels right\u201d based on their individual relationships with their patients, or on their personal concepts of etiquette and ethics. In other words, once we have a better understanding of how young people grief in digital spaces, palliative healthcare workers can be equipped to guide their young patients and clients using their preferred coping mechanisms, devices, and vocabulary. To a generation for whom death and grief are increasingly public spectacles, such care will be crucial to preserving the mental well being of cohorts to come.\n*\nHave you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you?\nWhenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways?\nHow can we use social media more conscientiously so as to create spaces for mutual aftercare?\xa0What can we do for each other in digital spaces whenever a global grieving event occurs?\nWe would love to hear from you.\n*\nThis article was written by Dr Crystal Abidin for OpenCare Research, Edgeryders. Crystal can be contacted at wishcrys.com. The production of this article was supported by Op3n Fellowships - an ongoing program for community contributors during May - November 2016.', u'entity_id': 548, u'annotation_id': 11565, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u"Let\u2019s talk about it: 67 % of Malagasy people are about 15 to 25 years young. \xa0Statistically 15 % of graduates get an exact job for the position that they prepared for in University, 65% remain jobless and 10 % know someone high placed and get to work for an unsuitable job and that they don't have any idea what it is about or how to do; about the last 5% have something \xa0planned for, and finally the 5% remaining help \xa0parents at home. Many foreign companies like to employ people from Sri Lanka or Indonesia because they are more skilled and less corrupted... We have more and more foreigners who are coming here to get rich. It's also another gate for economy and illnesses from both sides.", u'entity_id': 746, u'annotation_id': 11564, u'tag_id': 1873, u'entity_type': u'post'}, {u'quote': u'The poor celebrate double in our holidays because of a race for\xa0goodness, because the concept of "Eid"\xa0in the perception of Islam linked to "Zakat"\xa0which is basically the process of cleansing the money by giving the poor his legitimate right of the money which is 2,5 percent of annual profits in secret.\xa0If there is no secrecy Allah does not accept it .', u'entity_id': 797, u'annotation_id': 11584, u'tag_id': 1876, u'entity_type': u'post'}, {u'quote': u'rom the Zapatistas', u'entity_id': 521, u'annotation_id': 11586, u'tag_id': 1877, u'entity_type': u'post'}, {u'quote': u'Zapatista models', u'entity_id': 22039, u'annotation_id': 11585, u'tag_id': 1877, u'entity_type': u'comment'}]