It\'s always going to be communication though. The issue with dense material is that in my experience it is not conducive of a feeling of belonging. Especially if the topic is so fundamental, and claims to be the social contract, it can make people feel excluded.
\n\nPeople stumbling on it is just a random subset of all people (slightly skewed to the curious): smaller, not different. And only few of that subset will "get it"
', u'post_id': 41152, u'date': u'2018-01-27 22:23:29'}, {u'user_id': 4, u'title': u'Hmmm. Not sure. I think this is not ', u'comment_id': 41458, u'content': u"Hmmm. Not sure. I think this is not for communication. It is there to consult, when people are unsure on what to do. It is also a trust building device, not so much for people who read it, but rather for people who notice it's there. This means someone's gone through the exercise of actually wondering what sort of commitments they can actually make, and how that is still ethical and better than not bother with doing the project (or delivering the service) at all.
", u'post_id': 41152, u'date': u'2018-01-27 15:31:59'}, {u'user_id': 3362, u'title': u"I've been a bit swamped with work, but ", u'comment_id': 41442, u'content': u"I've been a bit swamped with work, but I've gone through this. I can't say much other than that it's obviously complete and in line with our values. Drafting a text like this is hard work and definitely a help for projects that have no time for this kind of deep thinking.
\n\nAs far as a communication tool towards patients/clients/community I'm not so sure. The contract is quite dense. It should be tested in different contexts I guess. My hunch is that you need to put this in an easily digestible format like a graphic or easier language, add examples etc for it to be useful to people who are not project leaders or deeply involved in the business of thinking about stuff.
", u'post_id': 41152, u'date': u'2018-01-26 09:20:20'}, {u'user_id': 3798, u'title': u'Notes from the session!\n\nAs with the movie Hypernormalisation ', u'comment_id': 41156, u'content': u"Notes from the session!
\n\nAs with the movie Hypernormalisation by Adam Curtis, we will only begin to see all the systems at play in shaping our reality once we take a step back. In this session, we sought to reflect on the systems at play in our worlds that play a role in shaping our reproductive destiny. We noted how the ancient practice of choosing one's reproductive destiny has become so foreign. Due to the multitude of entities invested (even only partially) in controlling a woman's reproduction -- pharmaceutical companies, local/state/national governments (laws!!), schools, religious bodies, culture, husbands, fathers, doctors, teachers, etc -- it is a daunting task to seek autonomy. The interplay between doctors, pharmaceutical companies, and governments alone should make any one skeptical of the treatment they are receiving. But is there even an alternative? As a group, we reflected on our own infrastructure related to our reproductive health -- do we trust the entities at play? For some, there are strict laws preventing abortion, for example. For others, the laws were more lenient but came with a list of caveats. Who can you trust and what are your options? Rather than fighting all of these powers at play, we realize we can arm ourselves with knowledge. Knowing our own bodies that we are typically so alienated from, is the first step towards sovereignty. We also must understand our own needs as individuals and as communities. We found commonalities between stories shared within the group (from around the world), but so much is different. Through the discussion we realized that the work must be done at a the hyper-local level because context matters. At the end of our discussion, GynePunks gave an inspirational preview to some of the tools they've created in order to take power over their bodies and reproductive sovereignty.
", u'post_id': 34452, u'date': u'2018-01-12 00:35:02'}, {u'user_id': 3992, u'title': u'Really looking forward to your presentation, and to ', u'comment_id': 38197, u'content': u'Really looking forward to your presentation, and to exchanging about reproductive health initiatives in different places.
', u'post_id': 34452, u'date': u'2017-10-12 21:18:43'}, {u'user_id': 3, u'title': u'Hello @liz_biospherex, sorry I missed your proposal, catching ', u'comment_id': 36216, u'content': u'Hello @liz_biospherex, sorry I missed your proposal, catching up on my reading about biosphere now
Meet @natalia_skoczylas ! Earlier this year she penned the outstanding story of Poland\'s underground abortions and how women collectives fight repressive legislation. Looking forward to meet you in Brussels.
\n\nA little backgroun: My own story and contribution to the opencare discussions and what it means to go backwards instead of forwards re: medical systems in an Eastern European country, is this one..
', u'post_id': 34452, u'date': u'2017-09-14 15:33:32'}, {u'user_id': 4, u'title': u'Highly relevant, @liz_biospherex! I am curious: why do ', u'comment_id': 34568, u'content': u'Highly relevant, @liz_biospherex! I am curious: why do you speak of knowledge "lost"? The story most of us in my generation heard is that, before legalisation of birth control, all people had was folk remedies, unreliable at best and dangerous at worst. So, it is a story of knowledge "gained". Can you elaborate?
', u'post_id': 34452, u'date': u'2017-08-21 16:05:23'}, {u'user_id': 3367, u'title': u'Liz thanks for the post and welcome to ', u'comment_id': 34472, u'content': u"Liz thanks for the post and welcome to the community! This is such an important topic and one I know we'll discuss more at Woodbine. Will be in touch about details!
", u'post_id': 34452, u'date': u'2017-08-17 20:09:47'}, {u'user_id': 2201, u'title': u"Here's an article about my latest curated exhibition ", u'comment_id': 40759, u'content': u'Here\'s an article about my latest curated exhibition featuring works of 4Plus collective
', u'post_id': 5042, u'date': u'2017-12-27 11:11:18'}, {u'user_id': 2201, u'title': u"Also, here's a recent article depicting the current ", u'comment_id': 31837, u'content': u'Also, here\'s a recent article depicting the current situation with the refugees in Armenia.
', u'post_id': 5042, u'date': u'2016-12-09 19:34:35'}, {u'user_id': 2201, u'title': u'@Noemi @Alex_Levene Here is the link to my ', u'comment_id': 31546, u'content': u'@Noemi @Alex_Levene Here is the link to my research paper from 2015. Hope it\'s useful. Let me know if you need further info.
', u'post_id': 5042, u'date': u'2016-11-29 15:22:28'}, {u'user_id': 3, u'title': u'Yes, do share the research', u'comment_id': 31479, u'content': u'.. I would be super interested, thanks!
', u'post_id': 5042, u'date': u'2016-11-27 10:04:22'}, {u'user_id': 2201, u'title': u'@Alex Levene that\'s great. Do', u'comment_id': 31475, u'content': u'@Alex_Levene that\'s great. Do find out if there is the possibility to exhibit our project/ host a presentation followed by a discussion during the event.\xa0
\n\nOther then that Syrian refugees in Armenia need psychological support(therapy, meditative yoga, etc) and there is no capacity in the country. So this is one kind of help we might need from your mentioned UK charities(language barrier might be an issue).
\n\nI did conducted a research in 2015 and I can share it if you are interested.\xa0
\n\nI will post my thoughts in the ideas page.
\n\nCheers,
', u'post_id': 5042, u'date': u'2016-11-26 15:29:22'}, {u'user_id': 2569, u'title': u'@Iriedawta. I think that would be really interesting. ', u'comment_id': 31470, u'content': u'@Iriedawta. I think that would be really interesting. I could even talk to the organisers of the festival and see if they have space to exhibit some of the photographs at the festival.
\n\nI think the other benefit could be to line up the work you are doing in Armenia with some UK citizen-led charities who may be able to offer support and volunteers to help out in Armenia.
\n\nWe really want the event to about positive steps forward, and were keen to share stories where people have made a real improvement, or created a new service themselves. If there are still issues and negative conditions within the refugee provision then it may be most useful to prepare a document that outlines these, with some suggestions as to how people could help from home. We could then circulate this at the event and make it available online through social media and the ER platform. Just an initial idea.
\n\nPlease feel free to add to the page where we are collecting thoughts:\xa0https://edgeryders.eu/en/the-culture-squad/ideas-for-building-an-event-at-the-intersection-of
', u'post_id': 5042, u'date': u'2016-11-21 09:31:55'}, {u'user_id': 2201, u'title': u'Cool!', u'comment_id': 31460, u'content': u'Thanks @Noemi, @Alex_Levene \'s event seems exactly the kind of project I\'d love to collaborate with! Concerning our timeframes, right now we are in full production phase and we will finish collecting stories and photos of the refugees(around 30-50 families) by January 2017. The final result of the first phase is going to be a presentation of our work and screening of the photos + storytelling. After this I will be curating an exhibition of the photography with captions and this will be a large scale event in Yerevan(probably April - May). We already got sponsored the first phase and more donors are\xa0interested to fund the second phase(Armenian Redwood Project, etc). To cut this short, I\'d be more than happy to present the outcomes of the first phase during Alex\'s event and possibly talk about the refugee situation in Armenia in general.\xa0
', u'post_id': 5042, u'date': u'2016-11-21 09:16:07'}, {u'user_id': 3, u'title': u'When is your exhibition?', u'comment_id': 31439, u'content': u'Very happy you are keeping yourself busy with great endeavors! Alex is organising an event to increase\xa0learning across refugee workers and wider public within an arts fest\xa0in the end of February in London - we\'re just now discussing potential formats.. if we know your timeline who knows, maybe we come up with some idea 
Hi @Noemi dear, thanks for checking in! Actually there is some improvement, concerning the awareness about the situation in the government and policy makers\' circle. I am happy to notice that now more and more agencies talk about the issue of Syrian refugees and the need to accommodate them and help them integate in Armenia. As for me, I gradually disengaged from the formal activities of Armenian Redwood Project (ARP) since it moved to a more bureaucratic and administrative sphere\xa0that I was not very comfortable dealing with, compared to the field work I have been doing for over a year, and currently I am only writing content and helping with field work. ARP has now teamed up with other agencies to work on a project of\xa0offering housing to the refugees with a lease, so that instead of paying rent they can pay for it monthly and own the apartment after a few years. As you know ARP has been subsidizing the rent of the refugees for the past couple of years.\xa0
\n\nNowadays I\'m juggling a few projects, all of them are important causes I care for and I wrote case studies about during the Futuremakers project\xa0- I\'m managing a social enterprize Sunchild Eco Tours\xa0\xa0and the Eco Lodge\xa0in the only privately owned nature reserve in the Caucasus - the CWR, organizing\xa0events and the AiR program in the Institute for Contemporary Arts in Yerevan AND working on my own art project The Return: Environmental Portraits of the Syrian Refugees in Armenia together with my friend and a talanted\xa0photographer Anush Babajanyan of 4Plus Photography. The final product will be a photo exhibition and storytelling event that aimes to bring awareness to the issues of Syrian refugees in Armenia. \xa0And we will definitely involve the Syrian restaurants to provide food for our opening ceremony(maybe some collective cooking eventually). People in Armenia got to like and appreciate the taste of Levantene cuisine and Syrian food is popular more than ever in Yerevan!
\n\nSo yeah, I\'m uberstretched and have almost no me-time considering I\'m single-parenting since I moved to Armenia in summer 2015. \xa0Luckily I have had the chance to be one of the beneficiaries of Stega\xa0\'s 6 week yoga course for the changemakers of Armenia (just had my last class on Wednesday) and we hope to fundraise to offer yoga and meditative therapy classes for the refugees in the nearest future.\xa0
\n\nI\'m also preparing another art project which is called "Juggling Dinosaurs" that is going to tackle the notion of single parenting in Armenia for females, who receive no support whatsoever...a woman, a mother, an activist and a professional trying to juggle it all....
\n\nSo there you are, now you know why I was absent from the platform for such a long time...hope to meet you all for LOTE6(is it happening?) next year! Edgeryders(you, @Nadia, @Alberto, @Patrick_Andrews and Co) is always on my mind and I\'m trying to follow all the developments on the platform. I will definitely come back!
\n\nMuch love
', u'post_id': 5042, u'date': u'2016-11-18 08:06:38'}, {u'user_id': 3, u'title': u'Updates? Also, food brings people together.', u'comment_id': 31164, u'content': u'Hi @Iriedawta, I hope all is good with you and your\xa0little one!\xa0
\n\nI\'m curious if 10 months after we had this conversation the situation of Syrians ethnic Armenians\xa0has improved in your country? Some days ago in response to my post about the\xa0community dinner we organised in Cluj you mentioned you would like to do something similar in Yerevan? I was wondering how these food businesses set up\xa0by refugees\xa0(which you linked to) are progressing and if there is a chance of showing value for the community by involving them in such a simple, yet fun event? I look forward to returning, and 2017 is the year!! Let\'s have a skype sometime to let you know about updates.\xa0
', u'post_id': 5042, u'date': u'2016-11-15 15:54:18'}, {u'user_id': 2201, u'title': u"As I didn't have my session during LOTE5, ", u'comment_id': 30633, u'content': u'As I didn\'t have my session during LOTE5, here\'s the documentation I\'d like to share here. Your feedback would be\xa0much appreciated!
\n\nMy presentation\xa0, an article about the current situation and a success story.
\n\nWas great to be part of LOTE5 <3
', u'post_id': 5042, u'date': u'2016-03-07 21:23:17'}, {u'user_id': 2201, u'title': u'Here is a great initiative by Natakallam (one ', u'comment_id': 29994, u'content': u'Here is a great initiative by Natakallam (one of the founders is Armenian) aiming to alleviate the struggle of jobless Syrians in Lebanon by pairing them with students learning Arabic for conversation-focused classes over the internet.\xa0
\n\nIn providing Syrians with work opportunities, the platform also caters to a specific need within the Arabic learning community interested in the spoken Levantine (especially Syrian) dialect.\xa0
', u'post_id': 5042, u'date': u'2016-02-05 10:57:30'}, {u'user_id': 2201, u'title': u'Great question, @Teo. Indeed', u'comment_id': 29561, u'content': u'Good question, @Teo. Indeed this is another obstacle to the integration of the refugees in Armenia as the locals\' attitude towards them is if not hostile then at least indifferent. It is sometimes hard for the newcomers to rent an apartment as the landlords do not trust them and prefer to rent to locals or Europeans/Americans instead. Syrian shopkeepers and restaurant owners mention some local people do not prefer to buy from them.\xa0
\n\nAs Armenia has lots of unsolved social issues(e.g. in Gyumri, the second largest city in Armenia lots of people still live in temporary houses provided by humanitarian aid back in 1988 due to the earthquake), some locals feel those issues should be addressed first before addressing the refugees\' issues.\xa0
\n\nThis is sad, as most of the Syrian refugees in Armenia have Armenian origin and their ancestors fled the Turkish massacres of 1915-1924 to find\xa0shelter\xa0in\xa0Syria, and Armenians talk a lot about recognition of the Armenian Genocide\xa0\xa0forgetting that the grandchildren of the victims are now back in their homeland and they need urgent help.\xa0
', u'post_id': 5042, u'date': u'2016-01-19 14:40:27'}, {u'user_id': 3057, u'title': u'How about public perception?', u'comment_id': 29126, u'content': u'Great session, @Iriedawta!
\n\nI was wondering what is the public perception towards refugees in Armenia?
\n\nI was recently part of a small communication project, implemented by a local NGO, about the situation of refugees in general and in Romania. One of the activities was to go to universities and talk to students about the challenges that migrants and refugees face. I intuitively knew it, but I was still taken by surprise by the negative attitude towards refugees that some of the students we interacted with had. Maybe it was just ignorance and lack of information, but I founded it concerning since it\'s not rarely that refugees have to rely on others\' support and open-mindedness .
', u'post_id': 5042, u'date': u'2016-01-15 16:43:05'}, {u'user_id': 2201, u'title': u'Just adding a cool project to check out.\xa0The ', u'comment_id': 26121, u'content': u'Just adding a cool project to check out.\xa0The Refugee Project is a narrative, temporal map of refugee migrations since 1975.\xa0
', u'post_id': 5042, u'date': u'2016-01-15 14:11:05'}, {u'user_id': 2989, u'title': u'Undisclosed content ', u'comment_id': 23377, u'content': u'Undisclosed content', u'post_id': 5042, u'date': u'2015-12-22 08:25:51'}, {u'user_id': 2694, u'title': u'Just pinging', u'comment_id': 21364, u'content': u'@Anton_Sabbe, because I think this will be interesting for you.
So I\'ve discussed with ARP\xa0and got several ideas I\'m going to dive into during the session: for instance, I often come across the fact that refugees become overly dependent on our aid when we get too involved. It is very hard to find a balance when we want them to become self-sustainable in the long run.
\n\nAnother subject I\'d like to touch is the facilitation of information communication for the refugees in Armenia, we got many organisations that offer different kinds of help but it seems like refugees do not have access to the information and feel lost when they need help(healthcare, housing, employment, food/clothing, etc).
\n\nI am currently doing a desk research about how to improve the social services for the refugees here in Armenia and what I\'ve learnt so far is that we definitely need an independent unit with social workers with a call center, lawyer, social broker/real estate agent and employment agent.
\n\nHere\'s our latest blog entry about why Armenian organisations should cooperate to ensure resiliency in the face of the Syrian crisis. I\'ve also done several case studies of Syrian-Armenian refugees in Armenia: here are the stories of Ilona and Ashkhen.
', u'post_id': 5042, u'date': u'2015-12-12 18:38:21'}, {u'user_id': 2201, u'title': u'Thanks dear,\n\nWill be working on the core subjects ', u'comment_id': 12942, u'content': u'Thanks dear,
\n\nWill be working on the core subjects of the session and will update the event soon.
\n\nStill need to discuss this with ARP and see if they want me to represent them at the event.\xa0
\n\nWill keep you posted!
', u'post_id': 5042, u'date': u'2015-11-27 14:18:28'}, {u'user_id': 3, u'title': u'Useful context', u'comment_id': 12607, u'content': u"Thank you, this is great insight and gets us reading about the Armenian situation ahead of the event. Take your time to structure it, and like Nadia I think it will be super if the description will mention what it is you will want to achieve with the session, what questions will be answered so that people know what angle to expect (one or more of the system fails to integration and how the RedWoodProject takes on duties normally pertaining to placement centers? or?). Also makes it easier for anyone to decide whether this is a session useful to them. \xa0We'll be on the lookout for this!
", u'post_id': 5042, u'date': u'2015-11-27 13:49:25'}, {u'user_id': 2201, u'title': u'Your favorite composer has to be Aram Khachaturian ', u'comment_id': 11734, u'content': u'Your favorite composer has to be Aram Khachaturian
This is just a draft for me to work on in the coming weeks, I created the event as a reminder to myself mostly.
\n\nThere used to be and still is a large Armenian community in Syria (roughly 100,000, with more than 60,000 of them centralized in Aleppo), due to the displaced people who found refuge in Syria after the Armenian genocide of 1915-1924. Basically Syria was/still is considered the stronghold of Christianity in the region due to the Armenian population living there. Because of The Syrian Civil War, most of the Armenians would leave Syria and move to either Europe/North America or UAE(if they had relatives there and could afford the trip), otherwise they would come to Armenia as their homeland. The ones who still stay in Syria are either so poor they can not afford to move or they have properties that they can not sell and are afraid to leave risk having them robbed and vandalized, so currently the estimate of the remaining population of the Armenian community in Aleppo is approx. 5000 people.
\n\nThe sad reality is that the ones that do come to Armenia eventually (intend to) leave the country as they fail to integrate, find jobs and affordable housing though in the last 5 years you can feel their presence in Yerevan a lot: food joints serving delicious stuff that was once considered exotic and rare, good customer service(as in all post-sovietic countries it was non-existent in Armenia), new available services, diversity in many fields, etc
\n\nThis is a once in a lifetime chance for Armenia to improve and progress...we will never again have a chance to receive such human capital (over 17 000 people with different skills and professions, most of whom speak Armenian) coming to Armenia voluntarily, that is able to boost the local economy, bring diversity and change that is so needed here. However we are failing at providing the essential care needed for these people to resettle and start a new life here, so sadly, if we do not act, we are going to lose almost all of them.\xa0
\n\nOfficials are proudly reporting that we do not have tented camps like elsewhere and that the Syrian refugees in Armenia are taken care of and have lots of advantages but it is not enough. Even if they manage to find accommodation and a job, the salary is not enough for them to pay the rent and live a decent life (this is a problem for the locals as well, that is why every second person has a relative sending them money from abroad), the process of integration of students at school is non-existent(the Syrian-Armenians speak a different dialect and some do not know how to read or write in Armenian), the medical care system also has lots of issues...overall there is no platform to coordinate the care services available for the refugees resulting in people being lost and nowhere to turn to for assistance.
\n\n\n\nP.S.\xa0And we still got the issue of the Azerbaijan refugees who fled to Armenia after Sumgait massacres of 1988 who live in overcrowded dorms without any care..
', u'post_id': 5042, u'date': u'2015-11-27 00:00:47'}, {u'user_id': 8, u'title': u'Got a set of questions you want to focus on?', u'comment_id': 9308, u'content': u"Wow. I had no idea about the numbers, it's mind boggling. Why Armenia- Could you maybe describe a bit the historical/geopolitical context?
\n\nI know \xa0that there is a big Yezidi community in the country and my favourite composer is Armenian (guess which one :)) But not so much more. My guess is the same will be true for many people in the community and beyond.
\n\nAlso, do you have some photos from Armenia, the spaces where you are working? Clearly nothing that compromises privacy of the people with, but that gives an idea of the context/ environment within which you are looking for solutions...
", u'post_id': 5042, u'date': u'2015-11-26 14:35:49'}, {u'user_id': 3362, u'title': u'It was great talking to you in Boston ', u'comment_id': 37230, u'content': u'It was great talking to you in Boston @thomasmboa , happy to see you here! I\'m still impressed by your energy to make things better and your view on the maker movement.
\n\nI liked the article you wrote, so I\'ll include the link here as well
http://revista.ibict.br/liinc/article/view/3774
For policy inspiration, you may want to check out the Policy Redesigned - collaboratively rewiring inclusivity in to policy session at the festival. Do you think the approach would be applicable to your context?
', u'post_id': 37182, u'date': u'2017-09-29 20:08:49'}, {u'user_id': 4063, u'title': u'@winnieponcelet Compared to many countries in Africa, the ', u'comment_id': 37262, u'content': u'@winnieponcelet Compared to many countries in Africa, the approach used there is at an avanced stage of policy designed to take care of people with mobility limitations.
This panel can be so exciting to inspire the design of an african policy inclusive and sensitive to the needs of people with mobility limitations. I guess, in the African context particularly, the first thing to do is to advocate about the necessity of this policy and engage people with mobility limitations in the de shaping of the policy.
Definitely, I am interested to see how science shop in African context can be helpful: to hear about the need, to shape the policy, and to advocate.
', u'post_id': 37182, u'date': u'2017-09-30 13:30:20'}, {u'user_id': 3, u'title': u"Welcome to edgeryders @thomasmboa, I'm noemi, one of ", u'comment_id': 37423, u'content': u'Welcome to edgeryders @thomasmboa, I\'m noemi, one of the first around here, currently in living Brussels.
Are you a member of a fablab yourself or do you do your research independently?
You say impact as scale needs government, and gov support is easiest achieved when having international backup. Is international partnerships/ funding/ media something you are staying away from, intentionally, or have you tried and failed? Or maybe you find it very expensive to get that kind of exposure?
\n\nIn local government, maybe I\'m stupidly naive, but frankly I\'m even surprised you\'re not the city mayor, or one of the "elders" group members, most influential citizens and so on..
\n\nWe\'d love to have you in Brussels, let\'s see if there is an affordable option.
In addition to what Winnie writes above, I would say the first day panel on infrastructures for autonomy would benefit massively from your insights: Your understanding of the community dynamics but also government resistance. The take seems to be: where collaboration is not possible, but some of the people in the room might be more optimist. We\'ll see. For example, @cindys has been mobilizing groups to do citizen science, maybe there\'s examples she can share where barriers have been torn?
Eric Osiakwan, a tech investor in and around the African continent is also joining us for a panel on funding innovation - is there anything you would like to ask him in advance? I\'ll ping him so maybe he can already join here.
', u'post_id': 37182, u'date': u'2017-10-03 19:07:06'}, {u'user_id': 3757, u'title': u'told ya hope to see you there ', u'comment_id': 37432, u'content': u'told ya 
hope to see you there
Spoken like a true hacker! Welcome, @thomasmboa, and thanks. This is one hell of a post. I am intrigued that you view WHO-defined standards as "the capitalistic system": I think WHO would disagree, mostly in good faith, but I also think you are mostly right. Standards are classic (anti) competitive weapon \u2013 I wrote a paper about it myself, in a very different context, almost 20 years ago.
\n\nIn OpenCare we have attempted to address this issue. @lakomaa and @tino_sanandaji have been working on a concept they call "evasive entrepreneurship", which is what happens when entrepreneurial qualities are deployed to circumvent regulation instead of working within its framework. And @amelia has noticed interesting links between ethno codes such as legality and existing systems failure (but also safety) in her analysis (interactive visualization here).
It\'s also great that you put your work on zenodo (we do the same), it denotes openness (though the first 20 pages of the thesis appear to be missing). Hope to see you in Brussels, then!
', u'post_id': 37182, u'date': u'2017-10-04 16:34:47'}, {u'user_id': 4063, u'title': u'\n\nthomasmboa:\nschool\n\n@noemi Due to my PhD studies at Universit\xe9 ', u'comment_id': 37591, u'content': u'\n\n@noemi Due to my PhD studies at Universit\xe9 Laval, I am currently based in Quebec, where I am a member of the Fablab EspaceLab Qu\xe9bec. As a researcher for the LABCMO (common Lab between Universit\xe9 Qu\xe9bec \xe0 Montr\xe9al and Universit\xe9 Laval), I am studying some makerspace in Qu\xe9bec. My interest in Biohacking is due to my background in biochemistry. But for my thesis my focus is Africa, that is why the topic is:
Influences des soci\xe9t\xe9s traditionnelles africaines sur la contribution des tiers-lieux de fabrication num\xe9rique au d\xe9ploiement de la modernit\xe9.
Enqu\xeate sur l\u2019organisation, les pratiques, les valeurs et les objets de 3 Fablabs du Burkina Faso, du Cameroun et du S\xe9n\xe9gal
The government support I am talking about here is : policies to frame community-science action ; encourage the broad adoption of these local initiatives inside the country. Only official communiqu\xe9 can change the life of many people. Then funding can be useful\u2026
In my context, international partnership is very helpful, because our Government doesn\u2019t support open science and does not seem aware of this field or it is not their priority. But 1) International Organisation used to choose government as the first partner\u2026like that, be sure all the support will not reach to the population. For me it is not the good partner to bring impact where it is needed. 2) International Organization don\u2019t know our realities. They don\u2019t take in consideration that even if you are working with a local collaborator, the traditional structure of African society (family, clan, tribe, ethnic) still has a big influence in our manner to think, manage and organize. 3) It is very easy for Africans in the diaspora to be in touch with international organization and get their support. But for those who cannot travel (it is the case for many leaders and members of Civil Society Organisation (CSO)) ; the international support happens randomly or never.
Me, Mayor (lol)\u2026I am Cameroonian and 34 years old. I don\u2019t want to expose the political environment of my country here. But for a few notes, our President has spent 35 years in power (older than me) ; officially multipartism exists, but the President party is like the unique ; be Mayor means join this Party. And frankly, I am not sure that I will feel comfortable in this system. That is why I work directly with the community through advice and education and my philosophy is that local developement can be ensured only directly with/and inside the community. To support my action I have created in 2010 this school (legal) http://www.zikulumarie-claire.com/, with like 250 students every year. In this school I am doing formal education (nursery and primary) like that, I am training our future leader. I am doing informal and long life education through workshops and seminars, to empower people. I am also doing hygiene sensibilisation, with my mother, who is a retired nurse, we used to run this course : EVA (Education \xe0 la Vie et \xe0 l\u2019Amour), for sexual hygiene. @noemi I have too much to tell, but through these actions, I feel my impact more tangible and authentic than to be mayor under this system. Perhaps one day, if the system change.
All these reasons explain why I took the decision to do my research in Open Science and particularly DIY ; technology is a good way for communities to ensure themselves their own local development. That is why in December I will launch inside my community, one science shop combined with a lab, for the rapprochement science-society.
Definitely, I really want to join you in Brussels and share with you. Let me know how it is possible. @noemi @winnieponcelet @dailylaurel
Well I would discuss about that then
', u'post_id': 37182, u'date': u'2017-10-05 12:20:30'}, {u'user_id': 4063, u'title': u'Yes @alberto, I understand why you are \n\n\n\nalberto:\nintrigued ', u'comment_id': 37593, u'content': u'Yes @alberto, I understand why you are
\n\n\n\nI am involved in the Open Science Hardware movement, where I meet @dailylaurel. There is a big issue now in the forum, where many biohackers are trying to get certifications for their prototypes, and it is amazing to see which kind of barriers they are facing with.
I am wondering, the case of CRISPR the issues are just on ethics and safety? Or behind there is the need of protection of biotechnology industry.
A post was split to a new topic: Getting back a post draft
', u'post_id': 37182, u'date': u'2017-10-05 12:49:40'}, {u'user_id': 4103, u'title': u'Hello !It will be nice to have more ', u'comment_id': 38478, u'content': u'Hello !
It will be nice to have more time to talk than the last time at Cern into the Biofabbing context. Your thinking is addressing most of the worries about what it is and what can be this movement that for years we were thinking and acting. Into my close environment as living at "autonomous" community Calafou and Pechblenda lab and being active at Hackteria network more for the needed than for entertainment.
eg. If everyone is caring about climate change should be researching on that topic to re.appropriate and develop possible solutions; probably they are now doing something because it turns a trend ( and is money ) and looking for this perspective can be ok because is needed to act.
Although if we can look at the intentions and why the people do the things out of the trending and them probably we find people working and developing solutions for the day by day technologies that doesn.t give such a much money right ? The point is what happen when the only thing that is important is to save lifes, save the planet, if we together believe that things can change doesn.t matter the money around ... you do the things from the needed, and this is what is the important and what I consider a successful project here, in Africa, in Spain or In Antartida. Doing the things in this way is never payed with money you are been payed with looking at the impact having better conditions and new lines to explore. Of course is not a easy way, because people needs money to survive. We can talk for hours at this level but If I get a bit of distance and I look from the ecofeminisme perspective It will be easy to think on that:
I will love to find people that think in this direction, more about distributed, knowlegde, tools, money, to make balance not empowering and make the other suffering without having the basics, I think this project is around this main topics by the way, for that I consider essential to join.
', u'post_id': 37182, u'date': u'2017-10-18 09:36:05'}, {u'user_id': 4103, u'title': u'\n\nthomasmboa:\nme know how it is possi\n\nhttp://www.zikulumarie-claire.com/ nice one ', u'comment_id': 38481, u'content': u'\n\nhttp://www.zikulumarie-claire.com/ nice one
', u'post_id': 37182, u'date': u'2017-10-18 09:55:28'}, {u'user_id': 8, u'title': u'@markomanka might have some insight to offer... ', u'comment_id': 38716, u'content': u'@markomanka might have some insight to offer...
', u'post_id': 37182, u'date': u'2017-10-25 10:19:33'}, {u'user_id': 854, u'title': u'Hi @nadia\n\nthis time I was more comfortable on ', u'comment_id': 38810, u'content': u'Hi @nadia
\n\nthis time I was more comfortable on the sideline, but since you are calling me out...
\n\nThe issue is complicated and multifaceted, I would immediately give up any attempt at labelling the barriers as "ethical", "protectionism", or anything else... there are components of each of the above and more, and the problem is intractable if reduced.
\n\nI always recommend a pragmatic approach: what can be learnt from the obstacles and from the conversations collectively held with authorities? In my experience authorities will share many frustrations expressed here about "certifications", however they will describe the system as "the worst, except all the alternatives"... and in facts, what alternatives are there? Laissez faire? Skin the game? Humankind has been there, done that, and it\'s failures that have brought this style of regulation upon us...
\n\nAre you aware of communities working on accountability solutions? Cooperating with other organisations (Universities, Regional Governments, ... SCImPULSE Foundation 
) to set-up sandboxes to test alternative models of ensuring public safety, and sustainability of risks- and failures- management?
Until efforts of this sort do not diffuse and do not become convincing, certifications are likely there to stay, and to expand to those territories that are apparently unburdened at the moment... not only for bad reasons.
\n\nI don\'t know if @costantino, with whom we had recently discussed exactly this in quite some depth, wants to add something, or to correct me...
', u'post_id': 37182, u'date': u'2017-10-27 12:20:55'}, {u'user_id': 1935, u'title': u'hey @thomasmboa was nice briefly meeting you in ', u'comment_id': 38834, u'content': u'hey @thomasmboa was nice briefly meeting you in Brussels.
now reading this and your paper, and thinking about our small discussion with laurel and (..) on fablabs, hackerspaces in different countries.
I really like how you put it that the "alternative" economies ( sharing, circular....etc ) can just get back in the capitalism umbrella within the fablabs, makerspaces, communities.
\n\nlinking this with @baderdean \'s concern on the opensource collaboration within the African communities, also check the link in maping github in this comment on his topic. how do you think an african-african collaboration can come into action, even within communities not governments ( as you mentioned Gov\'s in Africa tend to trust European/US entities rather than their own people )
\n\nmay be also working together towards similar issues, [ could be mainly access to health care, food, clean water ] I don\'t understand french but was wondering if your experience with providing healthy diet to babies could be useful in rural Egypt ( ping @HadeerGhareeb @m_tantawy may be you know more about this ? )
Also wondering how the Muslim community in Cameroon dealing with wudu\' water, check this post and tell me if you think this could be suitable to experiment and adapt in the coming science shop there ( if there is a nearby muslim community, or if that is an issue there or not )
in the end thanks for sharing this here, this could inspire others to continue working on localized solutions rather than following the same colonial influence in a new way.
', u'post_id': 37182, u'date': u'2017-10-27 17:56:35'}, {u'user_id': 3782, u'title': u'Thank you @hazem for bringing me here to ', u'comment_id': 38835, u'content': u'Thank you @hazem for bringing me here to get to know such an inspiring person like @thomasmboa
\n\n\n\nfor some reason, I am not able to access the link but I am interested in this project.
what age group are you targeting? and do you have a follow-up method, like weighing the kids..etc?
I am not expert with that but I believe that diet wise in rural areas in Egypt is better than the one in cities, however, the unhygienic environment and non-clean water affect their health causing disease like diarrhea and vomiting reflect later on their nutrition state.
', u'post_id': 37182, u'date': u'2017-10-27 18:50:33'}, {u'user_id': 3362, u'title': u'As a result of our conversations over the ', u'comment_id': 38850, u'content': u'As a result of our conversations over the last weeks, we and the broader DIYbio community will help with collecting machinery for the lab in Cameroon like @thomasmboa envisions it.
\n\nIf all goes well, there should be an Open Insulin group starting in Cameroon in the coming months. Thomas\' blog post just went live on the website: http://openinsulin.org/open-insulin-in-africa-from-local-communities-to-the-lab/
\n\nI\'m excited to learn together how we can bring these localized solutions to life, within a relationship of equals, working on a common cause from our unique perspectives.
', u'post_id': 37182, u'date': u'2017-10-28 13:11:27'}, {u'user_id': 3, u'title': u'Whoa, hurray for @thomasmboa! I really enjoyed reading ', u'comment_id': 38881, u'content': u'Whoa, hurray for @thomasmboa! I really enjoyed reading your post and it is amazing that just 3 weeks ago you were writing about a science shop and a lab, and now you are setting up the lab! Do you intend to make OpenInsulin the core, priority project of the lab?
Very curious to read you again, feel free to re-use parts of that article when you synthetize your reflections from the festival - it\'s a very important outcome that people in the network can be proud to have contributed to, somehow.
I am sure you will also enjoy my post on the festival...be sure that the community is in the root of all. as in the blog on open insulin it is from community to lab....it is one of the consensus I had with @winnieponcelet and @anthony_di_franco.
\n\nso I am coming
', u'post_id': 37182, u'date': u'2017-10-30 11:26:03'}, {u'user_id': 3838, u'title': u"I've read recently the story of this nigerian ", u'comment_id': 40663, u'content': u'I\'ve read recently the story of this nigerian boy developing his own mobile app on a feature phone (not android one). He developed an interesting low-tech app that fits his market at the age of 14 without computer! He directly developed on his phone!
\n\nBut because of the lack of support, he didn\'t know how to develop his business and terminate his project.
https://medium.freecodecamp.org/how-i-went-from-programming-with-a-feature-phone-to-working-for-an-mit-startup-40ca3be4fa0f
I think there is a need here for dozens of Elvis Chidera to be helped to develop their own business and/or scale it. Just thinking out loud.
\n\n@thomasmboa, since we\'re living in a small world, do you know him or have you heard about this story?
', u'post_id': 37182, u'date': u'2017-12-21 07:57:10'}, {u'user_id': 4063, u'title': u"Thank you @baderdean, very interesting. I didn't know ", u'comment_id': 40713, u'content': u'Thank you @baderdean, very interesting. I didn\'t know him. I will se how he can attend the www.africaosh.com
', u'post_id': 37182, u'date': u'2017-12-23 06:23:19'}, {u'user_id': 2569, u'title': u'My experience at this point was more to ', u'comment_id': 39992, u'content': u'My experience at this point was more to do with what was happening within the volunteer community, rather than with the refugee community.
There were at that time a lot of long-term volunteers who were working themselves into the ground, providing nearly 24hr support 7 days a week to refugees on the camp. People were refusing to take time off, or to properly take care of themselves, causing massive burnout. The refugees were (with some exceptions) better at dealing with the situation and seeking help when i was available. Many did not take part in therapy sessions because to them the trauma was still ongoing. It\'s hard to process what you\'ve gone through when you are still on that pathway.
My opinion is this was largely down to misplaced guilt (why should i take time out from this when the refugees can\'t?) and/or the sense that they were operating at a level above the need for support (low level volunteers getting training on stress management, but long term project leaders not attending meeting because there were \'too busy\')
\n\nThe situation in Calais was very unique to that context, and has now changed completely.
\n\nThere is an interesting insight into the end of the camp here, with interviews with lots of volunteers i worked alongside: https://www.youtube.com/watch?v=lw6lbhcdbdI You can see from their interviews a small amount of the problem.
', u'post_id': 536, u'date': u'2017-12-05 16:02:40'}, {u'user_id': 4, u'title': u'I have a belated question... I know it ', u'comment_id': 39985, u'content': u'I have a belated question... I know it was over a year ago since we discussed this.
\n\n\n\nWhy do you think that is? Is it that refugees cannot process the idea of professional therapy, as opposed to offloading to a friend or relative?
', u'post_id': 536, u'date': u'2017-12-05 08:55:21'}, {u'user_id': 2569, u'title': u'There is an answer to this', u'comment_id': 33412, u'content': u'When you first posted your comment i had a rush to answer it immediately. I had a gut reaction that there is a response to the provocation.
\n\nBut try as i could i couldn\'t find the correct words to frame it.
\n\nI\'m not sure i\'ve worked it out fully even now but i think that the answer is this.
\n\n"if you build it,\xa0someone\xa0will come"
\n\nThe most important part is to not be concerned about attracting a predefined set of people to a structure, but to accept that the people who are drawn to your initiative are \'de facto\' the right people. Self- selection.
\n\nI feel\xa0that this is similar to the Edgeryders platform itself. Perhaps information around how people chose to engage in a digital landscape can be extrapolated out into the way they engage with physical organisations/structures/bodies in the \'real\' world?
', u'post_id': 536, u'date': u'2016-10-14 18:35:36'}, {u'user_id': 4, u'title': u'Ok, wrong question maybe', u'comment_id': 24862, u'content': u'Ok, @ybe , it might be the wrong question. People do what they do. The question is: is this impulse towards care reliable enough that we can factor it into project design? Are we looking at a sort of "If we build it, they will come" of community care initiatives?
', u'post_id': 536, u'date': u'2016-09-22 10:35:00'}, {u'user_id': 3403, u'title': u'philosophical question @Alberto ', u'comment_id': 24666, u'content': u'maybe this is part of an answer:
\n\nhttps://pbs.twimg.com/media/Csseq9xXgAAW9g1.jpg:large
\n\nIt is for me ... making a difference for someone makes me feel profoundly human, part of humanity ... I think connecting, helping, supporting, caring restores humanity in us, in the other and in the world
', u'post_id': 536, u'date': u'2016-09-19 18:37:22'}, {u'user_id': 4, u'title': u'What a beautiful post!', u'comment_id': 21551, u'content': u'This is not just informative, it\'s\xa0literary.\xa0And I sometimes wonder if you don\'t need the beauty for the information to hit home.
\n\nAs I read about the volunteers life in The Jungle, I am brought back to an impression I have had all through this opencare project. The impression is this: "the economy", "society", the world we know is only paper thin. Behind the surface of\xa0carbonated drinks and targeted advertising and employment figures\xa0and pre-election rallies, I glimpse self-organisation reaching out for ways to cater to our needs. It seems like it percolates through the crack of society, colonizing immediately any area that "the economy" retreats from. This could be why there are so many great stories from Greece coming through; Helliniko and\xa0@OrangeHouse , @Aravella_Salonikidou and her strange "not some social space", @MAZI , @Tree_of_Life , @To-Steki , @Jenny_Gkiougki , @Noesi ... Greece has suffered more than most countries, and yet there is so much resilience.
\n\nMayble another world is not just possible, it\'s inevitable. Maybe these communities are humanity\'s default configuration, and we are only held in place in large hierarchical system by massive dissipation, and even then just about.\xa0
\n\nVolunteers in The Jungle are sad, broken, exhausted. Why don\'t they go home? "We feel responsible", says Alex. Not good enough. Why do you feel responsible? Humans seem to be naturally building mutual help communities. Why? What are we missing?\xa0
', u'post_id': 536, u'date': u'2016-09-19 17:47:16'}, {u'user_id': 2569, u'title': u'Developed', u'comment_id': 16022, u'content': u'I think i initially went out to help because i had a sense of purpose. I fesire to use my skills to help people most at need of them.
\n\nAs my time went along though i certainly developed the sense of duty. I definitely saw this in the other long term volunteers i worked alongside.
\n\nThe self care training was mostly around sharing best practice. Asking groups to share ideas around how they unwind, stress reduction, how they notice stress in themselves and others. \xa0
', u'post_id': 536, u'date': u'2016-09-16 20:26:32'}, {u'user_id': 3, u'title': u'Long awaited story..', u'comment_id': 9328, u'content': u'.. and well worth the wait. Thank you!
\n\nInteresting how being a\xa0caregiver comes not just from sense of purpose or attachment, but a sense of duty.
\n\nAbout the training for self care: what was it like? I imagine that has something to do with how people find it hard to take days off,\xa0"switch off" as you say..?\xa0
', u'post_id': 536, u'date': u'2016-09-16 20:06:29'}, {u'user_id': 2569, u'title': u'Hi,Totally agree with this. The situation in Calais ', u'comment_id': 39338, u'content': u"Hi,
Totally agree with this. The situation in Calais has the added edge that most of the aid agencies operating there are UK based charities, but they are working in France. There is a need to try to work alongside local authorities (or be seen to) because we are 'outsiders/foreigners' and 'interfering'
Keeping the refugees in the community as a central part of the planning and decision making is a core part of the management though.
Many of us wish there could be a better, more permanent way of dealing with this situation. But right now getting either the French or UK governments to actually accept that these people are not just going to disappear into the air, well, that's almost impossible.
It\'s so sad to see that there is no way to move beyond that. And yet you hear stories like this school built by a Nigerian: http://www.bbc.com/news/world-europe-35714129 It\'s probably fragile and temporary though (if still there), but good example.
', u'post_id': 39328, u'date': u'2017-11-14 11:42:02'}, {u'user_id': 4, u'title': u'Got it!Very clear, thanks @Alex_Levene. ', u'comment_id': 39335, u'content': u'Got it!
Very clear, thanks @Alex_Levene.
Some of the facilities and services on camp are staffed and operated my residents of the camps. Both the Ashram Kitchen (link above) and the Jungle books use people from the camps to organise (cook, clean, serve, staff etc) their operations. Some parts of it a situated in specific areas of the camp and the people who live close to those amenities operate as security and safety overnight.
It's very much a case that the residents are very active on site. Whenever organisations start to build additional shelters, or do maintenance/repairs the locals get heavily involved. At the moment we aren't allowed to bring large-scale building material onto the site so resourceful communities and individuals are doing a lot of self building using scavenged wood and tarpualin/waterproof fabrics. There are lots of skilled people on the camps, some of them have been engineers, large scale construction workers so us volunteers are always happy to bring equipment, hand it out and then stand back and let the professionals handle the work.
It is probably true to say that there aren't any refugee-led projects on site, or if there are, i am not aware of them yet. It's certainly something i could find out more about by asking around.
My view is that most people living on the camp consider it to be a temporary pit stop before they get to the UK (even if it's 'temporary' for 9 months or more) and so aren't keen on setting up services long term on the camp when they could be in a lorry tomorrow night heading to Britain. Longer term residents who are more settled in the camp and are looked at as community leaders do a lot more than i am aware of, but in order to find out more about what they were doing to support each other it would be really benefitial to have a few translators who could have more detailled conversations with them. It's those guys who are the real heroes of the story. The volunteer workforce are just smiling, friendly couriers really.
What about the refugees themselves?
\n\nThis is a great story! What it seems to have to teach is this: refugee camps could sprout many more and better services if people were allowed to provide for each other. Score one for self organization.
However, from what I read I have the impression that this is a story about the volunteers. It is them (you!) doing all this amazing stuff. Are refugees themselvesd involved in building and staffing these services and efforts?
Looking forward
See you thursday in the call btw.
Hey Nadia,
Shame not to see you as well. I'm sure i can fit aother visit in when you're around.
Sorry this story isn't filled in properly yet, i've basically been writing massive proceedural documents for the camp people which has taken a lot of my time.
I think i'm about half way through the full write up, so all things being well it should be on the site tonight. Fingers crossed
Alex
Hi Alex, how are you? Sorry to have missed your visit- just back an hour ago after an intense week + in Berlin.
Very curious to hear about your experiences and reflections. In part because I would like to volunteer this spring but am unsure as to where I can meaningfully put my skills etc to use. In part because both Ezio and myself are adamant that this should be one of thd focal points in opencare
actually for this case, we know the counts on those three plates are very much different from zero, particularly as the green shiny e.coli colonies grew.
those bugs were not, again, found in \'tap\' water samples...
however, as we don\'t have any comparison from the other samples that can be used for real stats, since in no other case did we have at least 3 plates to count, we can\'t make much of a conclusion at all...
& indeed, having the standard deviation turn out to be more than twice the average count for the three plates that were \'scored\' gives us little confidence in the only average value already!
the take-home is that we have to plan well and proceed correctly to be able to draw conclusions from citizen science.
\n\nhoping to help more people realise this and encouraging them to do more too!
Yes, sorry: what I meant is that you have no p-values, so I don\'t know how to read the stats. I get it now: if the standard deviation is more than twice the mean of the bug count, the bug count is not significantly ("significantly" => 0.05) different from zero. Gotcha, thanks!
', u'post_id': 38825, u'date': u'2017-11-08 11:39:02'}, {u'user_id': 3362, u'title': u'I enjoy reading your explanations @rachel I ', u'comment_id': 39072, u'content': u'I enjoy reading your explanations @rachel I hope to delve into the topic a bit more myself soon as a water citizen science group starts here in Ghent!
Hi, Alberto! You aren\'t \'thick\' in my opinion, and obviously I should be able to make a more coherent story for you (all). Indeed with the microbio \'plating\' methods, we only can count the bugs that grow under the given conditions of nutrients and temperature and oxygen and pH etc... This is why we try to talk about \'colony forming units\' in the stricter analyses. Never are we able to get a number of everything that was in our original water sample... Another project from Hackuarium, the Water Drop DNA project (that has the \'explorer\' Mike Horn as a sponsor!) does try to find out all the things in a water sample -through DNA analyses - but that method doesn\'t give a real number of how many of each bug is represented in the sample (and can also include things that aren\'t even alive!) !
I don\'t think, however, that there are any p-value probabilities on the sheet. Just the counts (usually gross estimates) and one average and standard deviation (that shows the variance) for the one sampling site for which we had 3 plates...
However, I will try attach a graph that shows 95%-iles for some similar analyses...
It is very worth talking about this though, because what the probability shows is only valid in comparison to the controls. You start out with the so called \'null hypothesis\' (i.e. there is no difference in bacterial abundance between sampling sites and tap water) and if the P value when you compare the averages is very low, that means you can reject this null hypothesis, and say there is indeed a significant difference in bacterial abundance between sampling sites from these data.
So from the example graph, that I need to upload next, where these 95%iles all overlap, there is no significant difference in bacterial abundance, but (usually the rule of thumb is that significant diffs should be at least 2standard deviations away from each other - we can talk about normal error bars another time, if you want! ) the parts with a big peak not overlapping with others does differ significantly - at least statistically.
Which leads me to the next point:
The really crazy thing that is hard for people to grasp is that, even if your p<<0.01, there would still be a 1% chance that the difference you observed with your data is simply due to chance.
yep.
This is why there is a re-thinking of many old data based only on p=0.05 with low n numbers (this is why using 5 plates would be better than 3 plates, too, if you can manage it, to provide a concrete example of how to try to get around these problems).
This is also why really using the \'control data\' is important!
In our case, we can ask, for instance, how many times does the tap water give no bacteria? In fact, we were basically really screwed because we had tons of colonies even from the tap water samples, and should have included non-inoculated plates in the DIY (box in the bathtub!) incubation! 
There is a great quote I will find about this to include too!
ok, got, it - I actually took it from George Elliot\'s book Daniel Deronda, but says that in Aristotle\'s \'poetics\' he wrote (also quoting someone else!):
\'\'This too is probable, according to that saying of Agathon: \'It is a part of probability that many improbable things will happen.\' \'\'
Just to re-iterate in terms of probabilities: the P value shows the probability that what you observe could have happened simply due to chance. If P values are low enough, you are allowed to reject that null hypothesis and say there does seem to be a real difference between the different samples. However, there is still another important issue: this whole exercise never \'proves\' anything, in the way you can have some mathematical proof, or the way the media says - this study proves xyz!
never!
In fact, the true scientific method can only \'disprove\' something (i.e. to say, these are not the same!)!
& a new experiment with better controls and more statistical power can sometimes turn all beliefs upside down.
I love the idea that in the last decade so many things are being realised as quite important - microbes are part of us (10^14 of them vs 10^13 of \'ourselves\'), our neurons aren\'t forever and \'baby\' ones come into our brains from stem cells, DNA is repaired (but better to avoid damage, still) - these are just 3 things that are game changers.
I started my serious academic work, working with retroviruses, that showed that an old dogma of molecular biology (DNA->RNA->protein) is wrong - RNA->DNA too! And now with microRNAs, and more (RNA helping repair DNA), the RNA life hypothesis isn\'t just for explaining evolution, but is an important current thing in all living cells - crucial in my ideas about dynamic genomic integrity.
But I will try to get back to the point (though I could go on and on, and would love to hear other\'s ideas and thoughts!!)!
I am sorry that because of our weak data, with smears and few replicates, we can\'t say there is a real difference in bacterial populations from our water sampling!
Still, nonetheless, I am convinced that we had one good result - no E.coli observed in the tap water samples - so little likelihood that raw sewage was there, unlike for the Leopold park samples...
hip hip hooray! ?? 
I got a little deeper into statistics a couple of years ago in a MOOC course, and know that we would all benefit from more awareness of these issues.
Hope you have a great weekend!
\n\n', u'post_id': 38825, u'date': u'2017-11-04 06:39:48'}, {u'user_id': 4, u'title': u"Sorry, @rachel, I still don't get it (ignore ", u'comment_id': 38999, u'content': u'Sorry, @rachel, I still don\'t get it (ignore me if I\'m being too thick). You have described the many methodological challenges to obtain "well sampled" samples. Great. I also understood you are counting the number of bacteria per 100 ml of water. But I do not understand how you would count thousands of critters swimming around in a drop of water. Do you take a picture and then process the picture somehow?
\n\nAnd finally: your printout shows p-values. That means probabilities. But probabilities of what?
', u'post_id': 38825, u'date': u'2017-11-03 22:38:00'}, {u'user_id': 3704, u'title': u"could be fun to do more!! we've ", u'comment_id': 38919, u'content': u"could be fun to do more!! we've also done pool kit things for nitrates/sulfates etc, and I had two years of students doing the biotic index stuff on the banks of a river... (forms were posted in one part of this domain before...)
", u'post_id': 38825, u'date': u'2017-10-31 15:15:02'}, {u'user_id': 3362, u'title': u'Great summary and explanations @rachel ! Thanks ', u'comment_id': 38878, u'content': u'Great summary and explanations @rachel ! Thanks This should serve as a good addendum to anyone wanting to try this again on their water. I know we will do it here locally!
I recently met someone working at the Flemish water governing body who wants to set up a citizen science project in her spare time. There\'s not much room to do meaningful change inside the government, since in Belgium it\'s quite a mess: multiple governing bodies, bureaucracy, strict rules, all land is taken and blocked.
\n\nIt would be more than bacterial sampling, also bio indexing, inspecting river banks, turbidity, metals, ... How much experience do you have with doing those DIY? Ping @albertorey
', u'post_id': 38825, u'date': u'2017-10-30 08:37:20'}, {u'user_id': 3704, u'title': u"Aurelian's image number 2 shows real counts in ", u'comment_id': 38873, u'content': u'Aurelian\'s image number 2 shows real counts in a plate sector in progress, btw...
\n
colonies from la serre sink!!
\n\n(am I just replying to myself here, or do you see this, Alberto (and others?)?)
', u'post_id': 38825, u'date': u'2017-10-29 15:20:10'}, {u'user_id': 3704, u'title': u'Thank you for the questions and comments.Indeed when ', u'comment_id': 38869, u'content': u'Thank you for the questions and comments.
Indeed when \'printing\' a page from excel it is always hard to interpret how the columns fit together with labels.
I will add a box or something to help clarify what is what and attach it next...
In terms of the hopes for reliable numbers from the plate counts a bit of background might help for people who did not make it to the presentation or at least see the prezi (which is open access here: https://prezi.com/fbdthanaocd2/citizen-science/).
Basically, for environmental microbial sampling, the rule is to take 3 independent samples from each site, then at the minimum you will have 3 plates to count colonies on (even better would be to have min 3 plates per sample). 0.5ml of water is put on each plate, spread over the surface (using sterile technique) then allowed to grow. (In the end all the values are calculated to know the average number of original cells in 100ml of a given sample.)
Then, the other important thing to grasp is that each microbial colony seen the next day on the plates (containing millions of cells after the overnight growth) represents of a single original cell from the sample, that has replicated in a certain spot of the plate - we call these \'colony forming units\' because it is likely that there are lots of cells that actually don\'t make colonies (because they don\'t like the nutrients or the temperature or other parameters...). In fact the purple \'Levine plates\' contain bile salts that prevent a whole class of abundant bacteria from growing (gram+ ones, if this means anything to you). This helps us look for ones of interest, esp our \'bioindicator\' for untreated sewage, E. coli, which allows us to think that tons of other unknown things (enteroviruses, micropollutants) are also probably in the sampled water.
Of course, very importantly, one can\'t just sample without comparing to something or another, and generally there is always a positive control (here in Switzerland, we have used river water or even sometimes toilet water - I still meant to talk with the other Alberto more about how rivers are full of bugs... sadly...) and a negative control, ordinarily tap water.
Finally, you need to have confidence that your plates themselves are not going to just randomly have lots of things growing - an uninoculated control! This was something we really lacked last week! With the plates just freshly poured at La Serre, there were many possibilities for sources of contam, like the droppers we used to inoculate the plates with the water samples. Finally, the plates normally should have some time to lose excess water, otherwise the colonies can be smeary and very hard to distinguish one from another...
One other variable is the treatment of the sample. Ordinarily the rule is, after sampling, the tube must be kept in the cold and plated within 5 hours. Our tubes, perhaps, were not entirely sterile, and they were just carried around and left until we did the plating after dinner...
Ask more questions if this is not clear.
I will put an image up showing a collection of plates from one of our sampling days this last summer. (we had another special plate, termed \'chromogenic\' that allows one to distinguish at least 4 kinds of bacteria, and even a fluorescent substrate that confirms E.coli - pics of this are in the prezi...)
Then, as you say, we ultimately want counts that give numbers that we can use for statistical tests, like the T-test...
For these tests though, you need at least 3 samples averaged to compare.
However, we only had one set of 3 plates with counts, and their variance was so high, not much could be said, esp without an average of 3 from controls to compare against!
Counting more than once is another good option, and we could have attempted that - actually we still could using some pictures! But, because of the problem of the negative controls full of colonies (but at least not E. coli), we would still have a very difficult time drawing meaningful conclusions. The crazy incubation in the bathtub also meant that the plates were not only super smeary, but a couple only had saran wrap as a cover, and got squashed! Also one could imagine bacteria floating on water droplets to cause all our negative controls to have so many colonies (if it wasn\'t the droppers we used or the tubes we collected the samples in, which were left at RT too long...)!
\n\nQuantitative biology is coming of age now, I should note - tons of old papers that relied on stats p<0.05 are now realised to be completely underpowered and with non-reliable conclusions.
\n\nI am happy you asked some probing questions!
Have a great Sunday!!
Here is an example of plates from one week\'s sampling last summer.
The positive controls have lots of colonies, the negative controls almost none, and the regional samples (from Lake Geneva around Montreux Bay) have varying amounts. To note, 0.5ml was put on the positive controls, and unknowns here had 4ml per plate inoculated. Again, in the end you make the numbers per 100ml (as in Alberto Rey\'s Bagmati graphics...)!
Here is the summary I made already, with a few extra things:
Ok, I am not sure I can interpret those results. What do columns mean exactly?
\n\nAlso, about the "counting is not easy" part: how is it done? I would have thought:
\n\n
a.b. a = b. If the p-value is low enough, you reject the null and have found contamination.But I see a number with its standard deviation, not a p-value, to the right of your sheet. How do I interpret that?
', u'post_id': 38825, u'date': u'2017-10-28 20:59:17'}, {u'user_id': 4, u'title': u'@rachel I took the liberty of moving these ', u'comment_id': 38863, u'content': u'@rachel I took the liberty of moving these results into their own topic, which will make finding them easier.
thanks also to Nick and Winnie for getting lab stuff, including the pressure cooker autoclave, and to everyone for participating! at least we made the attempt, and E. coli was not in tap water samples... ciao for now!
', u'post_id': 38825, u'date': u'2017-10-27 14:50:27'}, {u'user_id': 8, u'title': u'Hey, great! The organisers are sorting out a ', u'comment_id': 39199, u'content': u"Hey, great! The organisers are sorting out a hotel - so that's settled. Drop me a line with your number so I can text you mine? nadia@edgeryders.eu
", u'post_id': 36387, u'date': u'2017-11-09 12:16:01'}, {u'user_id': 4095, u'title': u'Hey Love! Enjoyed my talks with you a ', u'comment_id': 39149, u'content': u'Hey Love! Enjoyed my talks with you a lot during OpenVillage Festival. Most probably will be in Berlin during these days. Would love to catch up! You have a place to stay?
', u'post_id': 36387, u'date': u'2017-11-07 22:24:17'}, {u'user_id': 8, u'title': u"Hi @emsone was super meeting you. I'm ", u'comment_id': 38957, u'content': u'Hi @emsone was super meeting you. I\'m in Berlin November 27-29 for something at Progressive Zentrum. Will you be around? Would be good to hang out
Ah...the metaphorical shower.
', u'post_id': 36387, u'date': u'2017-10-16 09:00:21'}, {u'user_id': 3, u'title': u'Nope, just a group wave of hugs as ', u'comment_id': 38342, u'content': u'Nope, just a group wave of hugs as appreciation, encouragement and so on.
', u'post_id': 36387, u'date': u'2017-10-16 07:00:05'}, {u'user_id': 2915, u'title': u'The "love shower" being one stall with two ', u'comment_id': 38337, u'content': u'The "love shower" being one stall with two shower heads?
', u'post_id': 36387, u'date': u'2017-10-15 19:47:29'}, {u'user_id': 3812, u'title': u'Thank you for sharing this with us! such ', u'comment_id': 38305, u'content': u'Thank you for sharing this with us! such a beautful space and spirit, serioulsy thank you for sharing that with us! and as @Hazem saidwe can lear a lot from this to develop our spaces in the MENA region ...
\n\n\n\n\n\n\n\n
I am guessing the diveristy of the people in there is what keeps the space unique and going, you know what is the problem in most of the MENA region countries? is that at some point it was a mess and having diffent people in one room would only cause a lot of troubles... however now things are getting better, at least for Tunisia
', u'post_id': 36387, u'date': u'2017-10-14 21:17:16'}, {u'user_id': 1935, u'title': u'hey @emsone a late welcome from my side. ', u'comment_id': 38255, u'content': u'hey @emsone
a late welcome from my side.
It\'s amazing to read about what you guys are doing. wanted to know more from you specially about applying the sociocracy model, what challenges did your group face, how do you think this can work within larger groups.
I am interested in knowing more about your governance model in practice, I am trying to apply sociocracy with my group in Egypt, mainly as a governance model we are not living together ( till now )
not sure if you are connected to this experiment days cohousing network, there are different cooperatives and intentional communities in Germany, would be nice to exchange knowledge in Case you are not connected. ( will be happy to connect you together )
\n\nalso pinging @amiridina @Heba @Yosser @m_tantawy , check this out as an existing model and let\'s see how we can learn in the openvillage in the southern Mediterranean region.
\n\nhope to see you soon in Brussels.
\n\ngreetings from Cairo.
', u'post_id': 36387, u'date': u'2017-10-13 19:13:09'}, {u'user_id': 8, u'title': u'Hi Henry and welcome to Edgeryders \n\nDaniel Kruse ', u'comment_id': 38157, u'content': u'Hi Henry and welcome to Edgeryders
Daniel Kruse mentioned this project during a discussion at UDK (if I am not mistaken). So nice to see that this bear fruit, congratulations! Noemi thanks for much for taking the time to share what your learned<3
\n\nLooking forward to meeting you!
', u'post_id': 36387, u'date': u'2017-10-12 13:37:10'}, {u'user_id': 4095, u'title': u"@bernard i'll be there looking forward ", u'comment_id': 38154, u'content': u'@bernard i\'ll be there looking forward to meting you! much love
Great article @noemi, Nieklitz sounds amazing. So many people are now edging towards a more earth-savy lifestyle. @emsone me , would be great if you or someone from Nieklitz could make it to the festival, we could learn loads from you!
Hi @emsone, you\'re officially the first in the Nieklitz crowd to jump on this openvillage ship..
\n\nMy impression is also that there is resonance with your crowd - and anyway edgeryders operates at the network level rather than a well defined group, so many people around here run community initiatives themselves. You should meet @bernard ! His crowd in Ireland also experiment with housing options ie tiny houses and ways of rewiring: among many, they do retreats at a castle near Galway, and mixing ecological sustainability thinking with the arts and health practices. Bernard is running a session on the last day of the festival.
\n\nHere\'s to kinship <3
', u'post_id': 36387, u'date': u'2017-10-06 09:15:36'}, {u'user_id': 4095, u'title': u'Dear Noemi!\n\nThank you so much for writing up ', u'comment_id': 37670, u'content': u'Dear Noemi!
\n\nThank you so much for writing up this amazing article! And thanks in particular for all the flowers I know I can speak for the entire Wir bauen Zukunft Team, that we are super happy you and your fellow participants had such an inspiring and enjoyable time on our project site. It was a real pleasure to host you!
To speak for myself, I was overwhelmed by the high density of awe-inspiring, like-minded and congenial people on site. That was a whole \'nother level I had so many great conversations that sparked new ideas and gave me different insight to quite a variety of different topics. Time wasn\'t enough to connect to everyone who attended, however every single contact was rocking my sweet socks I cannot remember having a longer conversation with you, but now reading your kind words and about OpenVillage and Egderyders I feel I missed out.
I feel quite tempted to stop by for the OpenVillage festival in Brussels. From what I got of your website and the short video clips, it\'s a gathering of similarly switched on people as during the Open State of Politics Camp. Dealing with key questions our modern societies and economies are up against. The role of community is becoming more and more important for moving on from a mainly individualistically shaped society. A few days ago I watched the BBC Doco "The age of self" and was struck again by how important our work here in Nieklitz and in all the other communities and projects around the world is. Long story short: I wanna come and would like to contribute with some input or workshop. I have a solid background in natural building, especially in building Earthships and could give an input on Earthship technology, the global movement and about social dynamics/personal growth potential in practical building workshops. I also could give an input on the Wir bauen Zukunft project, our approach to develop a project community and what we\'ve learned so far. Another option could be to run a little Case Clinic workshop, a format I\'ve learned during a U-Lab course which trains people in active listening.
\n\nKeep up the good work!!!
\n\nMuch love
Henry
Hi Ghanda,
Massively impressed with your project and entrepreneurship. Many congratulations on your awards, that must feel amazing I would love to know what your doing with the Life Guardian project now? What is the next step do you think in trying to implement your incredible work. I am a junior doctor in the UK and I definitely see mobile apps as an important part of our future in terms of trying to create healthcare autonomy and patient autonomy. I think there is HUGE potential in their use to help people not only understand their illness but manage it more independently too. I would love to know/ hear a little more about your next moves. Please feel free you email me or message me through the platform. Georgie.
Nice to read you @ghada ! Impressive indeed.
\n\nA nonprofit I helped start is doing science education for forgotten groups in Belgium. These are children from underprivileged contexts, people with physical or mental disabilities etc. A while back we planned to teach long term hospitalized children, but sadly it did not go through. Our added value is being able to translate modern or complex science into fun and instructive activities suited for the target audience and their context. Maybe this can be the start of a further conversation.
\n\nA group we have a hard time reaching is children with a migration background, especially those that are "fine for the system". They are not "doing bad enough" to be accompanied by specialized organisations, but by any measure they have a disadvantage that shows in their grades and ultimately how they enter society as young adults. There are many children from from Northern Africa here, and we have noticed that they need role models that they can relate to. Perhaps this is also something we can talk about.
\n\nFinally, of course, I agree our health care system needs some serious reform. We want to make pharma more open with Open Insulin. Nice to see we\'re all doing our part of the puzzle
hey @ghada was wondering how did it go with the social impact award ? and if there are any new updates with the Brussels-Tunisia collaboration.
\n\nping @winnieponcelet if you know any connection that could help in making this collaboration/partenership
', u'post_id': 35574, u'date': u'2017-11-03 21:24:28'}, {u'user_id': 2915, u'title': u'Greetings Ghada. First let me express how ', u'comment_id': 35660, u'content': u'Greetings Ghada. First let me express how impressed I am with your projects. But you say "we." Does that mean you have a team working on them with you? How far along are they? And where are you based?
', u'post_id': 35574, u'date': u'2017-09-06 20:25:59'}, {u'user_id': 4, u'title': u'\n\nasimong:\nMany of us (I definitely include myself) need ', u'comment_id': 38995, u'content': u'\n\nWell, @asimong \u2013 this is as good an illustration of "bootstrapping" as I have ever read.
I was one of @winnieponcelet\'s little group posing
\n\n\n\nBut I didn\'t get the chance to follow up, like our third member, so maybe I might do that here?
\n\nFor me, the key walk that it is far easier to talk about than walk, is the walk of caring for each other in a way that is mutual, supportive, non-invasive, and oriented towards mutual growth. I\'m absolutely with @alberto\'s response, as well, noting that in such a vast and challenging space, we are all lost, just some are more hopelessly lost than others. Alberto invites us to join together in humility on this one. I accept wholeheartedly! Our awe when we see others stepping up keeps us humble, but also draws us in, when we feel that our values are genuinely similar.
\n\nAs I\'ve said in reply to @nadia\'s contribution as well, I\'m working on writing something about ways of taking those first steps of care, particularly in the situation where we come together not knowing each other in advance. And I hope there are ideas that can help us both in the "Festival" context and also with our online community. Surely, it is vital to help people both to engage with each other and get to know each other well... It\'s not a mechanical process, of course, but I do believe we can encourage it more or less effectively. Again, no simple formulae. One size does not fit all. But I think there are enough common points that are emerging from many people to have some good guesses.
\n\nSo ... stepping up \u2014 absolutely! It\'s not other people\'s responsibility, it\'s ours as and when we feel that calling in us. But also ... but also ... we can support each other to step up, and that, I think, is where the culture of the community (or the culture set in a gathering) can make a lot of difference. Many of us (I definitely include myself) need some kind of support to step up. And I\'m pretty sure that there are some people I could offer support to for them to be able to step up. So let\'s celebrate the service of providing the step-ladder, as well as the courage of stepping up on it!
', u'post_id': 38830, u'date': u'2017-11-03 20:45:23'}, {u'user_id': 4, u'title': u'\n\nwinnieponcelet:\n\u201cI\u2019ve come to realise we are all Edgeryders, ', u'comment_id': 38837, u'content': u'\n\nWow, @winnieponcelet, great post. I think many of us, including "Edgeryders", found themselves in the same situation.
\n\nThere is something that really works for me in this "community of action" culture. This: in a diverse group of people with fairly aligned values, but very different practices, we look up, not down. We focus on the smartest, hardest working, most generous. We are awed by their vision and courage. At some level, we know these people do not represent the middle ground of our community, but its very best; and yet we cannot avoid feeling like "we should step up". I feel that myself, all the time \u2013 only to be told that there actually are some people that look at me and feel the same way.
\n\nI am coming to realise that the group of Edgeryders founders has grown, too, even if we that\'s not what it felt like. We were so busy just trying to make things work! And now suddenly people are asking us to hold workshops and seminars and masterclasses. They want us to teach them. And we are just barely keeping it together! But it makes some kind of sense, because when I look around I see sloppy thinking, bad work and business ethics, lack of rigour. We are lost, but yes, but a lot of organisations out there are way more lost then we are.
\n\nSo yes, I guess we try to keep going. We try to step up. What else is there to do?
', u'post_id': 38830, u'date': u'2017-10-27 22:36:37'}, {u'user_id': 3704, u'title': u"I hope we can 'break out' more with ", u'comment_id': 38981, u'content': u'I hope we can \'break out\' more with these ideas, especially with the next generation! I think that even ordinary schools might be up for this, even though (in my experience with a private school in Switzerland at least) many are much more well equipped than Hackuarium. Thanks, Simon, for your kind words (or probably I should say @asimong)! It is clear that the details are important, but especially having a valid basis of comparison - the \'controls\' - and replicates of tests (we usually aimed for triplicates, for instance, in the Montreux bay water sampling study, because the plates we used were pretty expensive, but 5 would be better). Additionally, I think also aims for raising awareness to increase active prevention for public health is a kind of \'care\' for us all - to help avoid wasting not only future resources but especially suffering.
', u'post_id': 38707, u'date': u'2017-11-03 13:30:09'}, {u'user_id': 200, u'title': u'For a short time I was a science ', u'comment_id': 38977, u'content': u'For a short time I was a science teacher in secondary schools. I even considered introducing the study of environmental chemistry instead of standard chemistry, but that didn\'t work out. But this kind of citizen science would bring great life to teaching, as well as helping adults take control of their own lives. I was fascinated by the citizen science aspect of the Festival as a whole.
\n\nWhat comes through your posts beautifully, @rachel, is the dimension of knowledge, experience and care (in the sense of being careful, rather than the other vital sense of caring for each other). The technology is secondary. Your posts here suggest that attention to the detail in the process is much more significant than, say, the difference between using a domestic pressure cooker rather than an official autoclave for sterilization.
\n\nThere\'s something here too that is shared between citizen science and open source software. It is that it is quite easy in principle to involve ordinary people in ordinary situations, without great amounts of expensive technology or large organisations.
\n\nBack to schools, though. How can we get these ideas, and practices, into mainstream secondary education? Perhaps through, first, alternative education and home schoolers sharing resources? If we did manage to get into mainstream education, that would be such a powerful springboard into the hearts and minds of young people.
\n\nIn the UK, we can perhaps benefit in an unexpected way from present trends. There are still large numbers of standard council-controlled schools, but increasing numbers of free schools and "academies". While these are perhaps set up to allow private interests to profit from education (very distasteful), they can also be used to break free of some norms, and maybe experiment with this kind of idea.
', u'post_id': 38707, u'date': u'2017-11-03 12:57:49'}, {u'user_id': 3704, u'title': u'In terms of what I specifically learned, I ', u'comment_id': 38966, u'content': u'In terms of what I specifically learned, I realised I never answered you here... Because I really would like to get more people doing citizen science, and especially help them become aware of how easily we might be able to help our cells avoid too much damage, also for future generations, I guess one personal thing I (re)learned was how difficult it is to push ideas onto people directly. Even if they seem very nice. For one example, many times I would have liked to advice people to skip their cigarette break (since cigarette smoke not only can directly damage DNA but prevent its repair!), but I guess there was only one person that I even pointed this out to (very gently, I think)... I believe people have an idea that there are so many bad things out there, that one more makes no big difference, and of course adults are allowed to make their own choices. Nonetheless, I hope that if they could really understand \'why\' such things are bad for us all, and the environment - based on this idea of \'dynamic genomic integrity\' getting disrupted, things could change for the better... (here is the link to my public service association, http://www.genomicintegrity.org/ just in case someone would like more info in this regard. The summary flyer btw is available already in 10 languages, but I would love to make more translations, and would also love more \'flags\' to show up the site\'s counter... I also want to point out to all the artistic people out there that the AGiR! Art Call is still open!!)
Outside of these reflections, concretely, one project I hope to collaborate more upon in the future is to join in somehow for the open insulin project, most likely via Hackuarium and its newly inaugurated P1 lab.
I would also like to help find funding for us all to keep learning more and ultimately help make the world better... (I finally filled in the form this morning...)
Two more things: I didn\'t see whether the info I sent before got linked into your list, but probably 1) including the prezi link (https://prezi.com/fbdthanaocd2/citizen-science/) would be good, as it includes the protocol for the quantitative micronucleus assays and microbio of envtal water samples, origami microscope, etc. at the end. Also, 2) I encourage everyone who did bring home a foldscope to explore more via this site (https://microcosmos.foldscope.com/) especially checking out their \'usage tutorials\' and trying to make more paper slides with tape and items of interest (insect wings etc)! Thanks!
Those are good articles to start on! I invited you to our Drive where there's plenty of articles. We should put all our brains together at some point with those that have specialized skills.
\n\nRe: Swiss Foundation, yes this is an option! We're still figuring it out though. Following up on a lot of thoughts and threads from the Festival.
", u'post_id': 38707, u'date': u'2017-11-02 08:30:16'}, {u'user_id': 3704, u'title': u'sorry, our Hackuarium board meeting started at 6:30 ', u'comment_id': 38952, u'content': u'sorry, our Hackuarium board meeting started at 6:30 today... but I am very interested in learning more and further collaborations, and wonder about mentions of swiss foundations to somehow help the open insulin effort in the Day 2 document from the OpenVillage Festival...
I also wonder if Hackuarium (with its new P1 space, just officially opened today! my first bioluminescent strain - from colleagues at the UNIL - is growing on a plate now in Hackuarium, and we will be doing a first \'golden gate\' cloning exercise, as part of the how to grow almost anything course, soon!!) might be able to start a small project to get involved in some real way.
To get myself more up to speed I\'ve done a bit of googling, and found this review of interest, from mainly egyptian researchers:
\n
This PLOS One article was also interesting (even if one of the authors works for Merck):
http://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0167207&type=printable
We do have one member who has done quite a bit of protein work, and is just about to turn in his thesis... Maybe I can convince him that we should get really going, and form a project group around this idea.
One extra thing I noticed, ironically: IP is used as a common abbreviation for the insulin precursor in the literature.
best to all!
I\'m contributing to the Academy idea that took form after the festival. I believe we\'re going to talk about it more this evening at the community call (6pm Brussels time). Feel free to join
Heya, we\'ll add it!
I would really appreciate if you filled out the forms. Working to input that data into the a collective report, so the more concrete it gets the better, thanks Rachel! @winnieponcelet can speak for himself I guess..
Looks good!
\n\nHow do I add this link to your list? https://edgeryders.eu/t/results-of-the-diy-lab-analysis-of-water-contamination-in-brussels/7591/5?u=rachel
\n\nI could put more info in also about the cheek cells and diy scopes etc\u2026
thanks again!
RA
p.s. do you think I should fill in the form about joining in for more ahead??
what is Winnie\u2019s position in the group?
Hi @rachel - well all the sessions have been documented, including Bernard\'s, so we will be sharing them broadly over the next weeks. Can you add a link to your own somewhere here?
\n\nAs we are now in a deep evaluation process and weighing all the work that has been put in against the outcomes, I wanted to ask you what have you learned, specifically? Are there things and projects which you are now working on in collaboration with other community members as a result of the event? For example @thomasmboa is setting up a biolab in Yaound\xe9, Cameroon after having met Winnie and Anthony! Will follow this idea of new collaborations on email, but having it here for the record would be great!
', u'post_id': 38707, u'date': u'2017-11-01 07:49:05'}, {u'user_id': 4034, u'title': u'Thx! ', u'comment_id': 38933, u'content': u'Thx!
', u'post_id': 38811, u'date': u'2017-10-31 21:15:29'}, {u'user_id': 5, u'title': u'\n\nalberto:\nThat kind soul was me.\n\nThank you for the ', u'comment_id': 38848, u'content': u'\n\nThank you for the writeup! So I have attributed the first post to you now.
', u'post_id': 38811, u'date': u'2017-10-28 12:55:45'}, {u'user_id': 5, u'title': u'Thank you, I edited it in ', u'comment_id': 38847, u'content': u'Thank you, I edited it in
Hey mods, the \'American Lady\' was @sabgaby
', u'post_id': 38811, u'date': u'2017-10-28 12:08:16'}, {u'user_id': 4, u'title': u'That kind soul was me. I was not ', u'comment_id': 38841, u'content': u'That kind soul was me. I was not yet familiar with the faces, so there is misattribution and shorthand like "French guy". Sorry
Uganda And @Rachel, here\'s more: https://www.mixcloud.com/Rebel_Uppa/acholi-folk-pop/
And this was the facebook event with a video
aha! Thanks, Alberto! a sort of west african lute they say...
and do you know the country the musicians actually came from, too?
great sound ...
That instrument, @rachel, was a kora.
', u'post_id': 38808, u'date': u'2017-10-28 20:46:11'}, {u'user_id': 4, u'title': u'2 posts were split to a new topic: ', u'comment_id': 38862, u'content': u'2 posts were split to a new topic: Results of the DIY lab analysis of water contamination in Brussels
', u'post_id': 38808, u'date': u'2017-10-28 20:48:36'}, {u'user_id': 3704, u'title': u'good pics!\n\nstill want to know what instrument those ', u'comment_id': 38824, u'content': u'good pics!
\n\nstill want to know what instrument those musicians played, and from which country. Here is another funny picture that I probably already shared with Noemi: (but look closer, is Owen on the bus or off the bus? This sort of follows the John Coate lead...?? )
Thank you for providing the resources. They are a wealth of information that I think anyone interested in understanding what goes into emergency aid should draw upon, even if they don't get involved directly. Looking forward to listening to the mixtape too on my flights back home.
", u'post_id': 38718, u'date': u'2017-10-28 11:56:27'}, {u'user_id': 3686, u'title': u'@equipemediczad @bernard ', u'comment_id': 38719, u'content': u'', u'post_id': 38718, u'date': u'2017-10-25 10:57:34'}, {u'user_id': 8, u'title': u'You can find all the documentation and post-festival ', u'comment_id': 38769, u'content': u'You can find all the documentation and post-festival discussions here: https://edgeryders.eu/c/festival
', u'post_id': 38604, u'date': u'2017-10-26 14:55:04'}, {u'user_id': 3746, u'title': u'Ah! No worries ', u'comment_id': 38768, u'content': u'Ah! No worries
', u'post_id': 38604, u'date': u'2017-10-26 14:54:19'}, {u'user_id': 8, u'title': u'Hi Chris,the notes from the listening triads which ', u'comment_id': 38767, u'content': u'Hi Chris,
the notes from the listening triads which were submitted to us have been split into individual topics so that people who wish to connect with you based on shared interests etc can easily do so and you can find them in case you want to make additions/changes.
Is this post addressed to me? I didn't write this post, so it's a bit confusing.
", u'post_id': 38604, u'date': u'2017-10-26 14:36:31'}, {u'user_id': 2915, u'title': u'I wonder if there are co-housing communities that ', u'comment_id': 38757, u'content': u"I wonder if there are co-housing communities that do include care. I think giving care in many respects requires a deeper level of co-commitment than housing. At least it seems to me that hard as it is to give up a physical living space, if one of your cohort gets really sick and needs help and has no other people to help and it falls on you to give that help, I think that would be very hard to walk away from. But that level of commitment requires a lot of agreement up front or it won't be reliable.
", u'post_id': 38604, u'date': u'2017-10-26 07:21:53'}, {u'user_id': 2915, u'title': u"There is a lot of insight in @bilal's ", u'comment_id': 38755, u'content': u'There is a lot of insight in @bilal\'s observation. Maybe then family isn\'t quite the right word for "chosen family" if it doesn\'t include that level of commitment. Deep medical care requires commitment and often a lot of financial resources. Coming together to live for an unspecified time, doing work projects together and other deep involvements still generally do not include the level of commitment that generally comes with one\'s blood family, at least not in the long arc of one\'s life. Even when members of a blood family don\'t get along that well, I think there is still in most cases one\'s best chance of getting serious care compared to a circle of support or a chosen family if one doesn\'t have the resources to afford it for themselves.
\n\nUnless that commitment is stated and agreed to, not unlike a marriage..."in sickness and in health." I have known that kind of commitment with people not in my blood family. But now, years later, although I am still very close to my "tribe" from that time, I do not assume that I would receive that kind of support from them. That said, there are people in the extended group with similar status who have needed more care than they can afford and have received support via GoFundMe type efforts and benefit events. But past something like that, not so much.
', u'post_id': 38736, u'date': u'2017-10-26 05:08:27'}, {u'user_id': 4, u'title': u'I remember @bilal on Day 1 of the ', u'comment_id': 38750, u'content': u'I remember @bilal on Day 1 of the festival saying that we have now chosen families, but he finds it difficult to turn to chosen (non-blood) families for care. This relates back to @aquamammal\'s circle of support, but it also suggests that the circle of support is not small because of limits to human cognition (as it is in Dunbar), but because of something deeper related to familial ties.
\n\nI, too, would be interested in knowing more about this question by Bilal.
', u'post_id': 38736, u'date': u'2017-10-25 21:11:13'}, {u'user_id': 8, u'title': u' ', u'comment_id': 38745, u'content': u'', u'post_id': 38736, u'date': u'2017-10-25 17:18:18'}, {u'user_id': 3704, u'title': u"the 'big nuclei' remark was really a one ", u'comment_id': 38754, u'content': u'the \'big nuclei\' remark was really a one off observation from a workshop last spring. I really want to get everyone doing these expts on themselves, with good annotation and imaging one should be able to see if there is really any obvious difference in smokers...
Combustion products can result in extra molecules stuck on the DNA, termed adducts, especially of poly aromatic hydrocarbons, that one could imagine (with enough of them) to cause the nucleus to swell...
But, again this is just hypothetical. (but not really unexpected, perhaps)
Also, I just googled a bit, and see: https://www.sciencedaily.com/releases/2017/06/170612170919.htm
My particular contribution to thinking about Open Care, I think, was the idea from the quoted bit - to convince people that they can protect their cells\' dynamic processes (that I put together in the blanket term \'genomic integrity\'). If people took prevention more seriously, this could make all our futures better because it is not just a question of an individual\'s risk of cancer or disease but of subsequent generations being more likely to have new lesions (and it is clear there are tons of these every generation, as a more recent study has shown!! https://www.nature.com/articles/s41467-017-00934-5 ) and thus higher risks of new disease...
This of course impacts all of society needing to devote resources to the attempts to care for the diseased...
Thanks for probing!
Hope this make sense...
Wow, @rachel, this is tantalizing, but I do not quite understand it. Is it normal or counterintuitive that a smoker\'s cells have bigger nuclei? And: what do you mean by
\n\n\n\n?
', u'post_id': 38584, u'date': u'2017-10-25 21:13:56'}, {u'user_id': 5, u'title': u'\n\nm_tantawy:\nwhere i can see the original post?\n\nIn ', u'comment_id': 38735, u'content': u'\n\nIn this case there is no original post. We just use the quote feature to indicate something said by a platform member live during the OpenVillage Festival event (with notes taken by somebody else).
\n\nIf there is an original post, there is always a link in the top-right corner of the quotation to jump to it.
', u'post_id': 38572, u'date': u'2017-10-25 14:34:13'}, {u'user_id': 4, u'title': u'\n\nHeba:\nOpen Village\u2019s semi-formal structure has advantages, keeping the ', u'comment_id': 38641, u'content': u'\n\nI see it this way, too. It is important not to get the doers gridlocked by too much need for consensus. And yes, at least for me it is superuseful to check what I do against what others do in the same area. And, the more niche your project, the sparser, further away your peers. Hence the attention to international reach in Edgeryders, the embracing of (bad) English as a connecting language, and the emphasis on online, written communication \u2013 much cheaper at this geographic scale.
', u'post_id': 38572, u'date': u'2017-10-21 08:21:01'}, {u'user_id': 3729, u'title': u'hi anu . where i can see ', u'comment_id': 38632, u'content': u'hi anu . where i can see the original post ?
', u'post_id': 38572, u'date': u'2017-10-20 13:29:18'}, {u'user_id': 8, u'title': u'Would be nice to do something together in ', u'comment_id': 38717, u'content': u'Would be nice to do something together in the house in Morocco. The house/accomodations are paid for, but people will have to cover their own flights. But they can be very cheap from Europe with a bit of planning. I think it would be totally worth it. Kind of like the festival in slow cooking mode and with more time to actually play with ideas together.
', u'post_id': 5649, u'date': u'2017-10-25 10:42:23'}, {u'user_id': 3757, u'title': u'Bengt My man, tell me you bring him ', u'comment_id': 38401, u'content': u'Bengt My man, tell me you bring him over as well !!! that guy knows how to party...ho yeah also one of the most creative soul I know...indeed connected to hackteria, Berlinalle, public lab, and all sort of underground artistic stuff..
hello here !
I.m Bengt\'s friend and together we collaborate into the network of Biohackers called Hackteria.org.
Is a coincidence but I\'m now writing from the desktop of Gaudi, another developer from the Open drop project. Gaudilabs http://www.gaudi.ch/OpenDrop/
As Alberto mentioned before is difficult to think on Open source and imaging someone working alone at their lab, so well I think that this step is something that everyone needs to be allow after a research an developing to share the advances and faults into a big group, community... basically putting the results at the Wiki to make the others part of the process.
The network in which we are involved is not only working from the virtual feedback but also is a prominent net in which the hackatons and Event are very important as time to develop and fault but also make the others that come to visit get part of the hole process. So at this level we work really horizontally in many ways to make the change in how institutions and Most of the universities are still acting.
hello here !
I.m Bengt\'s friend and together we collaborate into the network of Biohackers called Hackteria.org.
Is a coincidence but I\'m now writing from the desktop of Gaudi, another developer from the Open drop project. Gaudilabs http://www.gaudi.ch/OpenDrop/
As Alberto mentioned before is difficult to think on Open source and imaging someone working alone at their lab, so well I think that this step is something that everyone needs to be allow after a research an developing to share the advances and faults into a big group, community... basically putting the results at the Wiki to make the others part of the process.
The network in which we are involved is not only working from the virtual feedback but also is a prominent net in which the hackatons and Event are very important as time to develop and fault but also make the others that come to visit get part of the hole process. So at this level we work really horizontally in many ways to make the change in how institutions and Most of the universities are still acting.
I would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\xa0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\xa0wiki, which has\xa010 contributors.\xa0
\n\nDid Bengt tell you anything about this?
", u'post_id': 5649, u'date': u'2016-06-28 10:22:40'}, {u'user_id': 3, u'title': u'ping @tneh - you would enjoy this post ', u'comment_id': 38706, u'content': u'ping @tneh - you would enjoy this post I believe..
It was really great talking to you at the festival <3
Thanks for sharing your personal story, it is super meaningful. For many of us who are involved with PMS, we suffer from health conditions that impact our ability to fully participate in other forms of activism. For some of us, these conditions could be said to have developed out of participation in collective struggles, where the participants were not familiar with how to take care of one another. Or, put another way, we got left behind. We allowed ourselves to believe that our symptoms were instead weaknesses that needed to be pushed through. We didn't pay attention to our own bodies screaming at us.
\n\nFor us, it is imperative to understand new ways of caring for one another that can be practically applied for groups. It is one thing to critique the existing system and to talk about what else is needed, but it is another thing entirely to actually make shit together and try it out. That's what we're trying to do. One of those things is our accountability model, which we hope to share more in Brussels with all of you.
", u'post_id': 869, u'date': u'2017-10-08 09:12:01'}, {u'user_id': 3323, u'title': u'Mental health is a great example, since such ', u'comment_id': 36632, u'content': u'Mental health is a great example, since such an overwhelming amount of people suffer from things like anxiety and depression (as you mention).
\n\nI was reminded of your comment because for me, this past summer, it has exactly been through "connecting with energies larger than myself" that I have started to learn how to dwell with my condition. There\'s this Rumi poem that I love that I am trying to embrace:
\n\nThis being human is a guest house.
Every morning a new arrival.
A joy, a depression, a meanness,
some momentary awareness comes
as an unexpected visitor.
Welcome and entertain them all!
Even if they are a crowd of sorrows,
who violently sweep your house
empty of its furniture,
still, treat each guest honorably.
He may be clearing you out
for some new delight.
The dark thought, the shame, the malice.
meet them at the door laughing and invite them in.
Be grateful for whatever comes.
because each has been sent
as a guide from beyond.
There\'s something about the metaphor of a guest house that gets me, as well. Perhaps its the openness to the world, or the hint of community that it invokes.
@noemi, I feel like you might enjoy this poem as well.
Thanks for the article! \xa0At Woodbine we've been having a similar topic, trying to untangle what care could mean in the context of our evolving situation. \xa0Especially in the field of mental health, this invisibility becomes unbearable for some. \xa0Living here in NYC, anxiety and depression are a chronic condition for most people, but there is neither the time nor space to devle into these topics. Worst yet, the stigma of talking about these things is so taboo, even though they are a natural and approrpriate reaction to the chaos around us. \xa0In addition, as was pointed out, our bodies are in a constant state of change and death is the only end point. \xa0So how can we change our view of health as being the abscense of disease to a more fluid and compassionate view? \xa0We think it must come from community and reconnecting with energies larger than ourselves, such as the land. \xa0\xa0\xa0
", u'post_id': 869, u'date': u'2017-07-03 15:59:57'}, {u'user_id': 3323, u'title': u"Still fits my friend's car metaphor", u'comment_id': 22199, u'content': u'The older your car gets, the more you have to care for it. And outlook matters---- you can either see your body as a rusty clunker, or as an old Mustang that needs more TLC than it used to
I think that your categorisation helps (not splitting people into "healthy" and "patients) because it allows us to see ourselves on more of a continuum, and have a more expansive notion of health. A lot of it is about reforming our cultural notions. Money factors in here as well---- you have to have money to pay for your upkeep. It\'s medically known that the less financial resources you have, the easier it is to have more health issues (see the double burden of obesity and malnutrition on the poor for example). In short, we have to look at the larger structural conditions and people\'s surrounding communities, rather than seeing people as singular patients. Hence a lot of Open Carer\'s focus on prevention and improving the environment (both human and natural) rather than interactions in a clinic.
', u'post_id': 869, u'date': u'2017-06-26 14:08:21'}, {u'user_id': 4, u'title': u"... and pretty soon it's everyone.", u'comment_id': 21007, u'content': u'I have been very fortunate with my health, but as I advance into middle age I become less tough. The price I pay for any deviation from healthy lifestyle, especially eating, got so high that I just moved away almost completely from alcohol and sugar. Despite this, I am getting other bugs: lower back pains, as the bad posture of a former musician catches up with me, and a tendency to put on weight that used not to be there.
\n\nI am not sick. But I am getting old. My capabilities are becoming limited: just as Noemi\'s hair stylist does not go to formal dinners, no point for me going to rave parties \u2013 I just can\'t take this anymore. This stuff will get worse and worse, and eventually my wetware will crash completely. In the mean time, like any old-timer, I still need to go about the world, and work and play with people of any age. Some of these people will not have the same limitation as I. This raises the issue of stigma (as @Bernard says) and relating across the limitation gap. Paradoxically, older people can even have it easier than people in @Amelia \'s or Bernard\'s condition in that we give visual cues as to our condition: we look older. But that does not mean much anymore. There are people in my running club who look (and are) pretty old, but are amazingly fit.
\n\nWhich means the effects of an actual medical condition are a darker shade of those of simply being less-than-peak fit. Which means, again, there are no "healthy people" and "patients", but only humans in different conditions.
', u'post_id': 869, u'date': u'2017-06-26 13:52:00'}, {u'user_id': 3433, u'title': u'Likewise.', u'comment_id': 18465, u'content': u'I agree, "I\'m here with you" is more incluisive in language, situation and energy. I like that.
\n\nI try to eat as much seasonal glyphosphate-free veg as possible and change shopping habits. When I\'ve a headache I whatever takes least amount of strength; doughnuts, choclate and something fizzy for comfort. But maybe the comfort is important too? Kolcaba, 1976ish - "3 stages of Comfort; relief, ease, transcendance."
Nice to virtually meet you, @Bernard -- and thanks for sharing, too. I think the more we talk openly, the more we start to understand how to support one another. I have been thinking, for example, of shifting my vocabulary from "I\'m here for you" to "I\'m here with you." Rather than putting the onus on the other person to articulate their needs, trying to be more active and supportive of my own accord.\xa0
\n\nI am also currently working on food --- I\'m trying to improve my overall nutrition, and lower my stress, in the hope that it will help. It certainly can\'t hurt. Elimination diets are tricky things, though, since our bodies are complicated systems. I too have been slipping food-wise lately as I\'ve been travelling. We can both take this opportunity to re-up committments to healthier practices. Let\'s carry on down the path
Hi @Amelia,
\n\nThanks for sharing that. I suffer similar symptoms, but less frequent,\xa0 and have become skilled at playing down the symptoms due to the stigma attached. When the pain is less than 6 out of 10, I work and close my eyes when I get the chance. Causes could stem from the fact that I\'ve had a few notable head traumas, but I\'m not sure, more likey to be food related in my case. Doctors diagnosis is migrane, broad ranging and I\'ve had no specific ENT tests.
\n\nPain meds kind of work if I get it in time. I\'ve done the vipassana meditation course. It isn\'t for "fixing" migranes, but it showed me the things I\'ve been doing wrong and gave me some tools that, to be honest, I haven\'t been utilizing properly. It\'s described as a "surgical procedure", which I thought was a bit dramatic until I tired the technique. It\'s not for everyone and shouldn\'t be taken lightly. I\'m very glad I done it though.
\n\nI grew up with processed food and have been trying to get away from it. I have a sugar addiction. Growing food helped me improve my diet and lifestyle, but I still have way to go. If I cut out processed foods, maintain regular exercise and daily meditative practice I think I can stay pain-free. I definitely wouldn\'t have written this in a public forum if it wasn\'t for your post, so thank you, it\'s given me the reminder I need to write food plans and stick to them. I hope we find pathways out of pain.
', u'post_id': 869, u'date': u'2017-06-26 12:25:39'}, {u'user_id': 3323, u'title': u'So true ', u'comment_id': 11685, u'content': u"Celiac is a really good example. As you aptly point out, he problem with invisible illnesses is that it makes people want to disappear even more. Like your friend who didn't want to go to the reunion.
\n\nwithout knowledge about these kinds of things, people can't help--- as you say, they are oblivious. So the infrastructures don't get built, and people stay invisible. I think it has to be a two way task-- people seeking to become more informed so they can be supportive , and people with invisible illnesses being willing to talk about them. Building a world without fear is tough but worth it.\xa0
", u'post_id': 869, u'date': u'2017-06-26 22:53:23'}, {u'user_id': 3, u'title': u'Another invisible one: celiac disease', u'comment_id': 9224, u'content': u'Hey you.
\n\nMy hairstylist who is a colleague from highschool suffers from celiac disease, the worst form.. a lifetime condition that he discovered at 19 after being prescribed many expensive drugs against a supposed allergy.\xa0
\n\nHe got better over the years but of course had to accept that he might never be "cured", just like you say. He can\'t eat out, like ever, but got better at managing his appetite for the forbidden.
\n\nHowever, I feel that it did isolate him quite a bit - to give you an example, he wasnt able to go to the highschool 10 year reunion because there was no point sitting at a festive table for a day and eating bananas.. while watching others stuffing up.
\n\nThis disease being much rarer in his city than, say\xa0in the US, it is much more difficult to find acceptance and support in the infrastructure around. Lack of infrastructure in turn translates into people being oblivious to this.. so unintendedly cant really support much unless they\'re close and witness what the disease really means, develop empathy and ways to show it, and so on.\xa0
\n\nThank you for sharing this, Amelia. It is really an eye opener.
', u'post_id': 869, u'date': u'2017-06-26 09:51:51'}, {u'user_id': 3, u'title': u'@equipemediczad I really enjoyed your session at the ', u'comment_id': 38705, u'content': u'@equipemediczad I really enjoyed your session at the festival - and took extensive notes. Feel free to signal anything I may have gotten wrong. And can we ask you to upload your presentation and share it on edgeryders?
\n\nWe were talking after with Taraneh @tneh and would be curious to learn more about how you develop your network of professionals and get support from them. One thing you mentioned is that they help you get donations of materials from the hospitals, or that they can help get into the system someone with no papers.
How do you approach them, or how do they become part of ZAD in the first place?
Thanks!!
', u'post_id': 36154, u'date': u'2017-10-25 08:16:48'}, {u'user_id': 8, u'title': u"@equipemediczad @Lacaterelle and @mcverter it's be ", u'comment_id': 38597, u'content': u'@equipemediczad @Lacaterelle and @mcverter it\'s be really great to have a chat ahead of the panel I am running on financing this afternoon. I don\'t know how you guys look - could you find me in the venue this morning? Ill be wearing a blue edgeryders hoodie and hideous glasses :))
', u'post_id': 36154, u'date': u'2017-10-20 05:42:02'}, {u'user_id': 4124, u'title': u'Hi Albertothere are currently social struggles going on, ', u'comment_id': 38468, u'content': u"Hi Alberto
there are currently social struggles going on, with regular demonstrations in the neighboring cities. Recently, there were demonstrations every week, with blocades or actions in the morning. Because of the police repression, the street medics have plenty of occasions to practice first aid. The most frequent injuries come from the teargas and rubber balls (see flash-ball on Wikipedia), or people hit by the police. When stun grenades or other grenades explode, there is a risk of shrapnel injuries !
Outside of confrontations with the police, it also happens that people living at the zad get injured while doing manual work (f.e. carpentry), fighting each others, picking fruits or even chopping vegetables... and of course some get ill... with more of 200 people living there, there is every day a lot of things going on !
About the health care challenges, it's difficult to summarize as there is a great diversity of ages, habits, activities and physical conditions at the zad. We will be able to discuss it more precisely at the festival.
This seems like an amazing panel. I am currently training to be a street medic so I hope I can learn new skills and contribute to the development of this invaluable effort
', u'post_id': 36154, u'date': u'2017-10-15 13:44:20'}, {u'user_id': 3992, u'title': u'Hi, for background information about the zad we ', u'comment_id': 38196, u'content': u'Hi, for background information about the zad we have a website, it\'s http://zad.nadir.org. It\'s randomly translated into lots of different languages, there\'s a tab up top where you can pick. Fifty years of local struggle and 8 years of land occupation is hard to sum up in a comment, but basically local farmers and citizens were against the airport, and city squatters came to join them, and built infrastructure and a new dynamic in the struggle, and then the state tried to evict but didn\'t fully manage, and then a lot more people came and we had to rebuild everything. And there\'s no police and so we organize everything ourselves without State intervention, which is why we get to do primary healthcare without diplomas.
', u'post_id': 36154, u'date': u'2017-10-12 21:10:58'}, {u'user_id': 3973, u'title': u"I'm looking forward to learning more about your ", u'comment_id': 38178, u'content': u'I\'m looking forward to learning more about your work as well -- and better understanding the relations between street / herbal / "traditional" medicine and medical / synthetic / "modern" medicine
', u'post_id': 36154, u'date': u'2017-10-12 17:50:17'}, {u'user_id': 3798, u'title': u'Looking forward to hearing more! This is very ', u'comment_id': 36964, u'content': u'Looking forward to hearing more! This is very relevant to the workshop I will be hosting on Day 2. Looking forward to hearing about your experience on the abortion gardens project and connecting women to resources.
', u'post_id': 36154, u'date': u'2017-09-25 10:18:35'}, {u'user_id': 3973, u'title': u'Looking forward to seeing how this autonomous healing ', u'comment_id': 36811, u'content': u'Looking forward to seeing how this autonomous healing paradigm plays out when it comes to women\'s health and abortion. Part of a project I\'ve been collaborating on, called How to Perform an Abortion, involves planting and workshops around Abortion Gardens. Very curious to see how people are discussing and understanding the connections between clinical knowledge and herbal knowledge (and access to both of these).
', u'post_id': 36154, u'date': u'2017-09-22 13:44:40'}, {u'user_id': 3798, u'title': u"I think it's a matter of scale and ", u'comment_id': 36757, u'content': u"I think it's a matter of scale and economics. Places where there is a lot of money to be made, you get the situation like where I'm at. However within this there are microcosms of egalitarianism. Sharing of resources, looking out for each other out of necessity but also desire to help. Outside of here you hear of neighbors helping neighbors, especially when there is no govt to come save them etc. There's desperation and people taking advantage of the situation. Perhaps this is just a more magnified version of reality. Those who were struggling will now only struggle more. Those on top can now take over entire resorts and hold people there with military force, working 12 hours a day, no power at night (no air conditioning), minimal food, and confronted by security any time they ask a legitimate question. No one to monitor safety of working conditions, call bosses out on racism, sexism. Even within this, there are microcosms of people helping each other but it's on a more horizontal level of course. Outside of this place, it's also very militarized since it's a disaster area and little of the infrastructure is back on grid. Once media attention is gone, there's less hope for outside aid. In the US it has become ingrained in many of us that we will always be able to depend on the government. When a disaster hits, it leaves those populations extremely vulnerable unless they prepare ahead of time.
", u'post_id': 36154, u'date': u'2017-09-21 13:43:27'}, {u'user_id': 4, u'title': u'I am curious about this post-hurricane situation... can ', u'comment_id': 36577, u'content': u'I am curious about this post-hurricane situation... can you say more about it, @liz_biospherex? So far, OpenCare has found that the best community responses have arisen from the direst need.
', u'post_id': 36154, u'date': u'2017-09-19 09:04:27'}, {u'user_id': 3756, u'title': u"Wow that sounds so exciting. Can't wait to ", u'comment_id': 36562, u'content': u"Wow that sounds so exciting. Can't wait to hear more about over the weekend.
", u'post_id': 36154, u'date': u'2017-09-18 20:39:10'}, {u'user_id': 3798, u'title': u'Thanks for sharing~ Have been hearing a lot ', u'comment_id': 36548, u'content': u"Thanks for sharing~ Have been hearing a lot about the ZAD through friend's and podcasts. I'm currently working in the aftermath of the 2 hurricanes that made landfall in Houston and Miami in the US, and I think about the vulnerability we are facing solely depending on the state infrastructure being there to catch us when we need it. It's increasingly not even about a political choice, but a practical one. There is big money to be made though by providing emergency services, and I'm witnessing first hand the sub-par care and quite regressive and inhumane patterns that are showing themselves in both cities. A lot of weaponry, a lot of masculinity and manager laborer dynamics... Looking forward to learning more about the ZAD and spreading the message!
", u'post_id': 36154, u'date': u'2017-09-18 14:26:08'}, {u'user_id': 4, u'title': u'Pas besoin de Google Translate, @dailylaurel. Je me ', u'comment_id': 36377, u'content': u'Pas besoin de Google Translate, @dailylaurel. Je me d\xe9brouille en fran\xe7ais. Apr\xe8s tout, j\'habite en un pays (partiellement) francophone depuis cinq ans
salut les zadistes camarades, combien de temps vous etes sur le terrain? J etais pass\xe9 a Notre des andes au tout debut de la contestation, javais aussi co-ecris un article sur le sujet > https://www.bastamag.net/A-Nantes-un-projet-d-aeroport
.
J aimerais beaucoup y retouner (apres 8 ans) sous l egide d\'edgeryders par exemple et produire un article commun sur les avancees sociales et communautaire (organisationel etc..) refaire un reportage photo etc...
I d love to go back there (after 8 years) and see the community improvement, it was such a political imbroglio and a take over from the people onto the lands....such interesting move...it all came out from a CAMP CLIMAT ACTION (correct me if i m wrong) where many of us europeen activist where coming to meet and think tank about it...in my views there was not enough hackers at the beginning but i guess that rapidly changed...awesome people needless to say...loads of hippies hehe
.
PAS D AEROPORT (yes @alberto it\'s about an airport that we the french didnt want to see build on a fragile natural ecosystem) it became such a story in the all world because the all thing blew off with corrupted politicians and fake politic communication...(if you wanna google translate my article in french...it was 8 years ago but I think our article is still accurate on the basic principles.... I stayed there about a week and we organised a huge critical mass...was fun...the farmers all around where helping us and we even organised some festivals and poetry lectures, skill sharing, bread cooking, kids everywhere...see the article... @woodbinehealth (i have seen some stickers NON A L AEROPORT even in brooklyn, greenwood haha)
Wow, @equipemediczad, this looks impressive!
\n\nThere seems to be quite a bit of background that I am missing. First of al, for non-francophones it is not obvious what a ZAD is (it\'s a zone \xe0 d\xe9fendre, a kind of autonomous zone). And then, I\'d like to know more about the functions of the street medics. I mean, you cannot be engaged in demonstrations and confrontations all the time, and yet you obviously have substantial skills, equipment and capacity. You hint at some sort of grassroots baseline health care service: the house where many medics live seems to have become a sort of clinic and to function outside of confrontation with law enforcement. Did I get it right?
\n\nAlso, it seems that there is a sort of permanent community living in the ZAD. Is that the case? If so, how many people live there? What are the health care challenges?
', u'post_id': 36154, u'date': u'2017-09-15 08:27:35'}, {u'user_id': 3367, u'title': u"@equipemediczad Welcome to the platform! We're really ", u'comment_id': 36279, u'content': u'@equipemediczad Welcome to the platform! We\'re really excited to see your work being published in a broad context like this format. You are such an inspiration to us here in the US!
', u'post_id': 36154, u'date': u'2017-09-14 21:05:09'}, {u'user_id': 3, u'title': u'i see. Guess it doesnt help that networked ', u'comment_id': 38703, u'content': u"i see. Guess it doesnt help that networked environments are not so good at following up with rigor. It's seldom that you find processes in place to channel great energy coming in after a project recruitment, or an engagement campaign and so on.
\n\nAlso, professionalization is a big issue because you get to have a weird and unique combination of skills that I am not sure how can be translated in a proper working environment, bankable as a business card etc.
", u'post_id': 37973, u'date': u'2017-10-25 08:03:43'}, {u'user_id': 3293, u'title': u'\n\ngehan:\ncontexts where they feel their skills are valued, ', u'comment_id': 38427, u'content': u'\n\nthis is completely it. I can do massive workloads of analyses, connections and opportunity creation on short time, but I can\'t do it regularly on a day to day basis. And i feel often that the second one is seen as the logical necessity for work and the first one a great extra, but only valued as working every day is satisfied.
', u'post_id': 37973, u'date': u'2017-10-17 10:03:17'}, {u'user_id': 3293, u'title': u"thanks for the follow-up @noemi, it's more about ", u'comment_id': 38424, u'content': u'thanks for the follow-up @noemi, it\'s more about informal responsibility or unwritten responsibility. I\'m not good at seeing every consequence for my involvement and sometimes I\'m surprised that the ideas I have work and then I don\'t know what to do with it afterwards. I\'m starting to have more conscience about the impact my ideas can have so I create safety protocols. Like for the next scenario, I\'m writing for CIN I will incorporate already a possible person who can follow-up if the idea makes it to a reality. I have a difficulty understanding unwritten rules. If you don\'t tell me exactly what I can\'t do that, or I need to do something that way I will first try to bend the rules, to understand if they are valuable or not
', u'post_id': 37973, u'date': u'2017-10-17 09:57:25'}, {u'user_id': 8, u'title': u"Mm I think that's sort of how the ", u'comment_id': 38370, u'content': u"Mm I think that's sort of how the edgeryders org works when it is working well.
", u'post_id': 37973, u'date': u'2017-10-16 15:27:50'}, {u'user_id': 3613, u'title': u"@yannick - thought provoking post. I'm going to ", u'comment_id': 38343, u'content': u'@yannick - thought provoking post. I\'m going to ping Eta @nicole who is moderating the panel for us - I imagine she\'ll have thoughts to contribute to this thread.
I like this term - it feels useful. The issues you\'ve highlighted are fundamental to creating organisations that generate health as well as other forms of value. I\'m really curious about the link between your involvement in CIN & anxiety level. I\'m guessing there are clues there that relate to the theme I\'m exploring - the conditions that generate health within our organisations. It sounds like these conditions are generating ill health.
I see this as connected to the issue of balancing the needs of the individuals and the needs of the collective/group/org and collaborating around strategies so that a broader range of these are met while at the same time its true that its not often feasible to meet all needs at all times. Greater attention paid to needs as a normal part of our operations would be one way forward.
I\'m also interested in how we might create organisational structures that are much more capable of functioning around individuals ability to function. The organisation I work for receives many referrals who are skilled and talented people who aren\'t able to hold down paid work because of health issues of various kinds. Yet often what they want more than \'help\' is contexts where they feel their skills are valued, where they can contribute when they are able and find support when they are not. Often this means not having someone trying to \'fix you\' and perpetually asking if you\'re okay which can just draw your attention to how \'not ok\' you\'re feeling. At one point we considered implementing a badge system - to indicate to others our internal state - a kind of \'leave me alone - its enough to know you\'re there\'.
But we haven\'t done that and we are only able to take people as referrals or as volunteers which feels like it falls short.
Thank you for bringing such a personal and interesting dimension to this discussion. Looks like the panel discussion will be an engaging one.
I only now found time to read you carefully @yannick, I am learning a lot. Thank you.
\n\nIn my work in just Edgeryders - one of the networks you write about I find a mix of interesting thing and day to day drudgery. The latter is everything that comes with building something lasting and ensuring things with potential, high energetic ideas and people take off or multiply. All this while searching for yourself as an activist and human.
Got my own ways of pressuring myself - like you and @bilal, but have been staying with it.
I have to say though, it doesnt automatically follow that the organisation gets the best of me. It only gets the best out of me/ us as long as it works for the individual. My hunch is that there is a time of serving it (compromising, daily efforts put into it, "staying with it" as @alberto likes to say) and a time of it serving you (in your words, this is "the collective looking after the individual"). It the long haul, it probably happens in cycles, and if the foundations are pretty solid it should work out somehow. With due failure and personal disapointments etc. @Gehan do you know anything about this?
Just a few additions:
\n\nWhy do you feel you don\'t fit the CIN narrative? What\'s the narrative? Is it because many of the things you start require you to followup?
I was at an OpenState camp just a few weeks ago (blogged about it here) and I get what you say about being given the space- self organisation onsite its something they do gracefully.
About Edgeryders:
Thank you for reminding us this. Always good to read it coming from somewhere other than the organisation.
', u'post_id': 37973, u'date': u'2017-10-15 10:17:59'}, {u'user_id': 3293, u'title': u"\n\nbilal:\nIt's my ability to get really passionate and ", u'comment_id': 38135, u'content': u'\n\nThis is completely recognizable! I think the key here is a sort of interdependence resilience, organizations need as many boosters as they need people that structurize the thing. The importance is the openness wherein this kind of dialogue is possible, and at the moment we still have it quite difficult to discuss this kind of behavioural threats just because of the fact we always thing it is a flaw that can be fixed, and other are much more perfect
', u'post_id': 37973, u'date': u'2017-10-12 10:16:10'}, {u'user_id': 4044, u'title': u'PS, yeah, I know the V\xe9lo M2 folk! ', u'comment_id': 38082, u'content': u'PS, yeah, I know the V\xe9lo M2 folk!
\n\nAnd I hear you about paperwork, for some reason I often leave grants and money on the table just because I can\'t spreadsheet. Yeesh. And then I wonder what I do have to offer when all the things that look like "work" are so tough for me. Makes me feel guilty and lazy sometimes.
', u'post_id': 37973, u'date': u'2017-10-11 11:27:49'}, {u'user_id': 4044, u'title': u'Wow. @yannick - I see the amount of ', u'comment_id': 38080, u'content': u'Wow. @yannick - I see the amount of self learning and self understanding it takes to be able to have this sort of discussion. I am having these sorts of discussions with many of the people I work with these days. I often find myself during my low days ignoring people entirely (it\'s especially different when I\'m not needed to be face to face which often affects my mood and ability to engage.) It\'s been a liability for much of the way I\'ve organized my projects and I haven\'t found a good way to manage. It\'s my ability to get really passionate and excited that energizes and instigates the communities I participate in, and then when I drop off the map during my low times things fall apart. For most of my life I\'ve taken this as a personality flaw, some thing I need to work on (drugs, meditation, diet/working out etc) and my loops keep happening, my projects fall apart, and what hurts me the most is the feeling that I keep letting people down.
\n\nNot sure what I\'m saying other than, I\'d love to discuss the individual within organizations - we\'ve designed much of our societal systems assuming rational actors working at their best. How would organizations looked when it takes people with mood swings and the jaded and the in progress and and in mind?
\n\nSometimes it\'s tough for me to realize that other people don\'t have minds like mine. A lack of empathy because I have no idea what it would be like to not be so bimodal.
\n\nPerhaps an aside... I once went to 5 different therapists and they all thought I needed some work, one claimed I was bipolar and should be on drugs. So I went to a spiritual/life coach/philosopher/trained therapist dude, he said my energy was too high and I wasn\'t grounded enough to be able to channel it well - hence the highs and the crashing. I worked with him for a while - much of what I worked on in those days was to be grounded and accept what was happening without desire for any other states. I became quite neutral and my loops ended. I also felt inanimate, the whole point of lithium was to avoid those states. So I stopped and here we are in loopy days again. Hugs!
\n\n+BG
', u'post_id': 37973, u'date': u'2017-10-11 11:26:11'}, {u'user_id': 8, u'title': u'Yannick I found I tool that is great ', u'comment_id': 37997, u'content': u'Yannick I found I tool that is great for errors called grammarly, check it out!
', u'post_id': 37973, u'date': u'2017-10-10 08:26:37'}, {u'user_id': 3293, u'title': u'this is my introduction for the infrastructure for ', u'comment_id': 37974, u'content': u'this is my introduction for the infrastructure for autonomy, if somebody could help clean out the grammatical errors that would be great, ping @noemi
', u'post_id': 37973, u'date': u'2017-10-09 20:18:01'}, {u'user_id': 3704, u'title': u'@albertorey (I guess I should put this in ', u'comment_id': 38702, u'content': u'@albertorey (I guess I should put this in to make sure you get notified...)
I copy my above note, just in case it goes directly to your mailbox.
my email btw is raronoff@bluewin.ch
Hi, Alberto!
\n\nYour presentation was so nice in Brussels, and I love your book also...
Your card did not have your email address, so I am first trying this to say I\'d still love to get a copy if possible.
I am at
Ch du Ch\xe2taignier 9C
CH 1026 Echandens
Switzerland
Hope your travels went smoothly and to see you again!
(go fishing next time??)
best,
Rachel
Hi, Alberto!
\n\nYour presentation was so nice in Brussels, and I love your book also...
Your card did not have your email address, so I am first trying this to say I'd still love to get a copy if possible.
I am at
Ch du Ch\xe2taignier 9C
CH 1026 Echandens
Switzerland
Hope your travels went smoothly and to see you again!
(go fishing next time??)
best,
Rachel
whow ! I am very excited to be part of Open Village and Edgeryders and look forward to working with everyone there.
Water was also the point from were we start to be more and more interested on Biohacking with a ecofeminism point of view. we start to be afraid of the situation of the river in our community in Barcelona Clafou and from there we were researching about fitodepuration and bioremediation to try to fix or at least solve the contamination from heavy metals and strogens at the water. Finally I was super sad to realize that you can.t do to much is the people from industry doesn.t stop top thought away contaminants. From the environmental to the body everything matters and is the same there is not a impermeable membrane on our skin we are permeable to particles, water, hormones etc. super interested on talk with all of you to try to find ways to get things better for future.
Hi @noemi. Yes I was there at Bagmati Cleaning Campaign. It is still running. Once a week people volunteer to clean the river. I volunteer two hours a week for a year. We also get an SMS reminder from government network which was very helpful to keep updated ourselves. More than two thousand people be there It was not only about cleaning the river but also the world heritage sites like Pashupati Temple which is considered as one of the main Hindu temple around the world.
Seriously?! Wow, @Anu can you say more? Were you involved directly, and how?
\n\nIs there anything which stayed with you, learnings about how to make a difference or coordinate ?
', u'post_id': 33636, u'date': u'2017-10-13 09:23:41'}, {u'user_id': 3422, u'title': u'Sorry for the late reply...it is taking me ', u'comment_id': 38199, u'content': u'Sorry for the late reply...it is taking me awhile to figure out the websites.
\n\nI just got this. I am very excited about the festival and look forward to you!
', u'post_id': 33636, u'date': u'2017-10-12 21:32:15'}, {u'user_id': 3422, u'title': u'That is amazing! I look forward to meeting ', u'comment_id': 38198, u'content': u'That is amazing! I look forward to meeting you!
', u'post_id': 33636, u'date': u'2017-10-12 21:30:36'}, {u'user_id': 3791, u'title': u'@albertorey I am from Kathmandu, Nepal and indeed ', u'comment_id': 36593, u'content': u'@albertorey I am from Kathmandu, Nepal and indeed Bagmati Cleaning Campaign was successful. I participated for 70 weeks.
', u'post_id': 33636, u'date': u'2017-09-19 12:12:21'}, {u'user_id': 4, u'title': u'Likewise. Also, @albertorey, you must be popular: this ', u'comment_id': 34459, u'content': u'Likewise. Also, @albertorey, you must be popular: this topic is the third most referred topics across all of Edgeryders over the last month!
I am very excited to be part of Open Village and Edgeryders and look forward to working with everyone there!!!! It should lead to some interesting discussions!!
', u'post_id': 33636, u'date': u'2017-08-17 13:38:43'}, {u'user_id': 4, u'title': u'Fly fishing definitely gets my prize for the ', u'comment_id': 33830, u'content': u'Fly fishing definitely gets my prize for the most original session proposal ever. Looking forward
Alberto is one of the people I look forward to meet at the Festival this October. We\'ve been in touch for almost a year now and his contribution is one of the most valuable in community building: the gift of attention.
\n\nThanks for the time and patience Alberto!
Hello
No, it is about making educational and care tools available to all.
Good afternoon @winnieponcelet
\n\nAs mentioned yesterday on the phone, it would be a very interesting opportunity to have someone with real life doubts and issues stepping up to talk this out in public.
\n\nI would not think of this any longer of an adversarial debate, as I understand rather than having 2 parties playing the devil\'s advocate for two alternative sides, here we would really have a joint exploration... but I prefer to keep things interesting for people, than to stick with schemes
Sure, that works.
\n\nThen I see two possibilities. The first is, in absence of a data expert to go head to head with @markomanka, @breathinggames could fill the spot with their project in mind. I\'m not sure if this setup lends itself to the CERN review format you had in mind. Marco, does it work?
\n\nAs another possibility, the \'Distributed data bases for health data\' project mentioned by @breathinggames can be the starting point for a more general group discussion led by Marco. @alberto and I have questions, surely others will too when they hear about what the GDPR implies, or if they are prompted to think about ethics & data protection in their context.
\n\nI\'m sure they both will be insightful, so I\'m good with either. What do the others that are involved think?
', u'post_id': 6479, u'date': u'2017-10-02 14:24:46'}, {u'user_id': 3704, u'title': u"cryptocurrencies!?\n\ninterested in this 'co-responsibility about the research' (tho ", u'comment_id': 37291, u'content': u"cryptocurrencies!?
\n\ninterested in this
'co-responsibility about the research' (tho wonder how one would propose to take care in case of problems...)
are you trying to market a product (but open source?)?
", u'post_id': 6479, u'date': u'2017-10-01 17:41:32'}, {u'user_id': 3704, u'title': u'It looks like my email reply this morning ', u'comment_id': 37219, u'content': u'It looks like my email reply this morning didn\'t work, so I will put it in here now that the site seems back up and ok!
\n\nmore soon, I guess!!
\n\nthis morning\'s email
Hi!
every time I try to go to the edgeryders site there is an error!
just to quickly address a couple of points:
definitely shared scopes are the way to go, with at least partners working together, with the plan (because of human reporting bias) that they would be counting each other\u2019s samples!
If there are only about 25 people, maybe a foldscope each is possible, even??
\n\nFor the water sampling, technically we should plate for microbes within 5 h of the sampling (the first evening of the meeting? can\u2019t even reach the schedule again now\u2026 Anyway, this would be fun and won\u2019t be too involved, just plating and putting them in the incubator, to check for colonies the next day), so we could then get into quantitative aspects of such data during the workshop, along with the cheek cells etc.
\n\nIn response a bit to your next note (will copy paste below, the bit) about data\u2026
Definitely all of this is a legal issue in terms of privacy and health, and should be \u2018anonymised\u2019 I guess before posting anywhere.
The micronucleus data are not strictly speaking \u2018genetic data\u2019 - though I totally agree with the gene-coop principals, and worry about everyone getting their sequencing done by 23&me or other services - but rather are a measure of the number of cells thought to have broken off a big bit of chromosome. If someone has super high levels of cells with micronuclei, one should try to see if there are any potential exposures that could explain the finding, ideally. (not too easy!?)
I am not sure if we can really hope that citizen access to all genetic info is likely to be widespread, in the face of IP, however, any time soon.
This is a very big issue!
For instance all the mutations linked to BRCA1 that are patented by Myriad Genetics are not available readily, because they want to use them to diagnose breast cancers! However, this is a great disservice to people and for health, because actually, as a DNA repair factor, BRCA1/2 mutations greatly increase the risk of many cancers, not just breast cancer, and including prostate cancer in men.
By not distributing this information generally, it takes away from the broad realisation of how important prevention really is (if you avoid damage to your DNA, you have less need of repair - and repair can actually end up fixing new - potentially worse - mutations in certain cases - nhej\u2026 I could go on and on\u2026) Study on how BRCAs are involved in repair is of course on-going, but again the human data are not readily accessible.
This is a sorry state of affairs!
I would love to have a data base of all the BRCA mutations to double check that they are all simply loss of function (or not?! dom neg??), but haven\u2019t got this info yet, for instance.
Hope there are others interested in discussing such points during the meeting!
\n\nLooking forward!
', u'post_id': 6479, u'date': u'2017-09-29 16:12:15'}, {u'user_id': 4, u'title': u'@winnieponcelet I see myself as an active participant; ', u'comment_id': 37161, u'content': u'@winnieponcelet I see myself as an active participant; sitting in the audience and asking a lot of questions. Will that work for you?
', u'post_id': 6479, u'date': u'2017-09-28 18:18:09'}, {u'user_id': 3362, u'title': u'Have you though about the data aspect of ', u'comment_id': 37147, u'content': u'Have you though about the data aspect of your work, @rachel ? Do you have any related legal questions that can serve as input for this session?
\n\nI for one am interested to discuss genetic data in general. At this rate of technological progress, citizen access to genetic information will probably become widespread soon. Though if we do, we should put it into an OpenCare perspective. Something along the lines of this project: http://waag.org/nl/project/gene-coop (although it is still more of a performance at this point).
\n\nFor the Open Insulin coop I have a hard time coming up with concrete questions now. We will go specifically into the idea during Anthony\'s session the day before. Surely questions will pop up there. I am also wondering what is the difference between regions (eg. US and EU), since Open Insulin is now global.
\n\n@alberto , given that you were one of the instigators, do you want to be part of this session as sparring partner with @markomanka ?
', u'post_id': 6479, u'date': u'2017-09-28 14:32:49'}, {u'user_id': 3400, u'title': u'This session would be very interesting for us ', u'comment_id': 36980, u'content': u'This session would be very interesting for us @alberto @winnieponcelet!
\n\nMedical device accreditation
As you may know, we discussed with @costantino and @markomanka the reproduction of our device that transformes the breath into digital data. Some of our contributors advocated for a medical device accreditation, while others were against it, as it would have recentralized and closed the project.
Following this, we worked on a new research proposal to evaluate the reproduction of the device by different populations, in three fablabs (one around scholars, one around local residents, and one in a low resource setting). We also created a document for the ethical board, that aims to explain why the device does not go through this accreditation process.
\n\nDistributed data bases for health data
Regarding open data, we have been working on a distributed database to ensure that the data collected are kept within the community. We have thought about a use of two different cryptocurrencies, one to mobilize the community that contributes to the games (devcoin), another to grant rights to take part to decision-making to the users that generate data. We did not work on the ethics part though, and it would certainly be very valuable to discuss different ways of approaching it \u2013 possibly in a community-driven approach, where the community takes co-responsibility about the research? 
Hi @winnieponcelet
yes, probably the best way would be to have some mechanism to collect questions topics in advance.
I would have hoped this conversation to serve somehow this purpose... "even" I have to study sometimes, and knowing what the questions would look like ahead of time would help me to dive in into more detail...
The closer we get to last minute, the more the session will be a high level browse through. Real cases need interpretation, and sometimes lead to other related issues.
\n\n...anyway, I understand there is no way out of this... alphabetisation will be better than nothing, I guess.
', u'post_id': 6479, u'date': u'2017-09-24 13:59:36'}, {u'user_id': 3362, u'title': u"I've been talking to the Open Insulin team ", u'comment_id': 36706, u'content': u'I\'ve been talking to the Open Insulin team in Oakland and some big questions came up on how to proceed after we have the open source protocol. The idea of a sort patient coop came up. It would be helpful to discuss the ethics and legal side of this.
\n\nGiven that @breathinggames also has questions, and then maybe attendees in the moment, but we don\'t have them at this point in time: how do we harvest them? An idea: ask people during the festival, before your session.
\n\nThen do we need to choose one \'representative\' that has an overview of all questions to participate with you in the format?
', u'post_id': 6479, u'date': u'2017-09-20 17:18:12'}, {u'user_id': 5, u'title': u"As Alberto says, it's a side effect of ", u'comment_id': 36652, u'content': u'As Alberto says, it\'s a side effect of reorganizing content on this platform. Sorry for the annoyance, I don\'t see a useful way around it right now. Here\'s what happened:
\n\n
" in the top right of the first post to see the edit history, it says "tags changed: \u2026").It could be @anu or @matthias reorganising content in the background. 
There has been some activity on this post by user @anu that has been notified to me, but I don\'t spot where the reply/reaction is... can you give me a pointer?
It\'s all good... but are we the only ones engaging in this decision making? Do the people pinged so far all share the same opinions? They did not even reacted to the posts with a "like"...
\n\nIs it that, maybe, people would rather have an intrusion of legal/ethical discussions within the other sessions? We could still think of something interactive and pragmatic, if anyone shared their desires and/or frustrations about what we propose...
', u'post_id': 6479, u'date': u'2017-09-02 16:53:04'}, {u'user_id': 3362, u'title': u"Let's make the call then and go with ", u'comment_id': 33918, u'content': u'Let\'s make the call then and go with the CERN style review. We can brief participants so that it is generative, as it does seem like a more direct approach that can degrade into a fight instead of a search for insight.
\n\nI remember @breathinggames has questions on legislation. Same for @dfko from the Open Insulin side (also what can be generalized across the US and Europe). @olivier also has similar questions on certification and safety.
\n\nWe\'ll be on the lookout for experts to join the session. Do you have a sparring partner (or multiple?) in mind @markomanka ?
', u'post_id': 6479, u'date': u'2017-08-03 08:17:15'}, {u'user_id': 4, u'title': u'@gehan: the three Horizon model is interesting. Ethics ', u'comment_id': 33829, u'content': u'@gehan: the three Horizon model is interesting. Ethics and data protection in citizen science project, however, are not easily classified as H1, H2 or H3. No one seems to care. Data stewardship is normally dismal. Many projects (of any kind, not speaking about citizen science in particular) are playing cowboy. In all this, H1 requires compliance, this is true. But compliance is not where the action is. The action is in self-motivated actions to do things in fairness (in ethnics) and steward the datasets that people helped build together (in data protection).
\n\nSo, you can take action because H1 demands it as a condition to fund your citizen science project (H1): in this case you will just tick boxes. You can do it to stay fundable, but while you are at it improve your practices a bit (H2-). You can do it mainly to improve your practices, and it\'s great that you get extra fundability (H2+); or you can do it because you believe that a world that puts ethics and data stewardship in research is fundamentally different from one that consumes people and data and moves on (H3). In practice, in H2-, H2+ and H3 you will be doing the same things, at least initially, because conditions in H1 are so poor.
', u'post_id': 6479, u'date': u'2017-07-30 13:13:41'}, {u'user_id': 3613, u'title': u'This discussion could easily constitute multiple session proposals ', u'comment_id': 33828, u'content': u'This discussion could easily constitute multiple session proposals rather than just one! I caught it last week but I\u2019m coming to a response late from other things. I don\u2019t know anything about GDPR or much about data protection in general but the discussion touches on a number of topics that interest me; policy re-designed as a tool for a networked and complex world and what Illich would refer to as the \u2018radical monopoly\u2019 that our procurement systems create.
\n\nBut it\u2019s another of Illich\u2019s concepts that seems to be the thread running through this conversation - the systemic problems that arise from growing institutionalisation. As Marco mentions \u201cbureaucracy tries to optimise for one model\u201d and for me this is the nub. It is entirely unsuited to operating within systems thinking perspectives and perhaps this is what is called for beyond creating multiple models.
\n\nSystems account for and allow a greater degree of variation and adaption unlike as you say, bureaucracy that seeks to encourage standardisation because this is one of the conditions it needs to operate. This is also how I would understand why institutions can\u2019t replicate bottom up approaches @markomanka - they are founded in two completely different operating systems to use Winnie\u2019s term. It strikes me that the ethics training of Mandarins that @alberto mentions facilitated operation in a living system - and therefore able to cope with the infinite variations that played out across Imperial China. Ethics and data protection compliance are the symptoms in this context but to my mind, the underlying malaise is hyper-institutionalisation.
\n\nI also see another dilemma unfolding in the discussion that may be helpful to tease out. There would appear to be an inherent tension not just in this thread but also within Edgeryders itself between responding to immediate needs and contributing to generative creation of completely new approaches and responses. For example there is some necessity in meeting immediate needs of those undertaking Opencare work - to pull in resources to support their work or to understand the implications of future changes such as compliance. At the same time, there is a pull - to work on the \u2018long shots\u2019, the longer term, bigger impact projects that @winnieponcelet mentions.
\n\nA frame I\u2019ve found useful is Three Horizons. Briefly: Horizon One (H1) is the dominant system, business as usual. Horizon Three (H3) for me represents a different paradigm - or a completely new way of doing things. Horizon Two (H2) is the space of innovation and this can go two ways: either prolong H1 (H2-) or open up H3 (H2+). It strikes me that Edgeryders and OpenCare are operating across all three horizons. Horizon One has been outlined in the proposition for OpenCare as rising health care costs and care systems struggling to meet demand. In exploring DIY welfare, OpenCare researches activity that falls into H2 stretching into H3. I\u2019m not totally clear yet whether the underlying goal for OpenCare is H2-; that is enabling the current way of doing things simply to function better or H2+/H3 - paving the way for the \u2018completely new\u2019?
\n\nSo in this discussion there are the immediate H1 needs of projects to sustain their work. What role does OpenCare (or might a session at OV) play in meeting these needs? But beyond this is there also a role to call for structural changes that get to the root of the problem? And this is where we hit up against mutually exclusive sets of interests. I\u2019m curious as to how OC and EE sees itself in this regard?
', u'post_id': 6479, u'date': u'2017-07-30 10:16:43'}, {u'user_id': 4, u'title': u'Oh, absolutely. I was just proposing an example ', u'comment_id': 33621, u'content': u'Oh, absolutely. I was just proposing an example of how anyone can declare interests, so that a specific format can be chosen.
', u'post_id': 6479, u'date': u'2017-07-26 20:14:47'}, {u'user_id': 854, u'title': u'Hi @alberto\n\nI hear you loud and clear, but ', u'comment_id': 33599, u'content': u'Hi @alberto
\n\nI hear you loud and clear, but you are not the committer of this session. I would like to collect the same kind of statement about expectations from (at least) all the projects that will come to create the OpenVillage (@noemi @winnieponcelet).
\n\nGDPR does not seem a hot topic in our conversations about ethics with the projects/communities we met so far (I tried to comment on this yesterday during the call, but @melancon mistook my opening for a reference to WP7 and I did not want to waste time in polemics)...
Furthermore, people in the legal field I regularly meet, have at the moment conflicting opinions about what to be expected from the new regulations that will soon take course... in facts, taken by the word the new regulations are clearly informed by a rather advanced view of IT, and they would seem to favour a migration to large platforms (please remember EU is working on an "open science cloud" of its own)... however, most legal professionals point out to the fact that the effect of any law will be shaped by the first (and later by the major) sentences by Courts... most envision some leniency in support of a realistic application of the law. An event centered on GDPR will happen, if the community wants it, but I feel it is a bit too early now for it to be anything more than a reading of the norms.
However, ethics in citizen science, something way larger than data handling, is a very appealing topic...
\n\nDoes this make sense to you?
', u'post_id': 6479, u'date': u'2017-07-26 14:32:28'}, {u'user_id': 854, u'title': u"Hi @winnieponcelet,\n\nas stated before I don't see the ", u'comment_id': 33598, u'content': u'Hi @winnieponcelet,
\n\nas stated before I don\'t see the two formats merging, as the principles of clinics, and total-peer-review, are quite conflicting, as it is the designed relationship of power in the two. In a CERN style event, we have to make sure a majority of the "parterre" has own projects, and stakes, that are touched by the conference topic, but there will not be 1-0-1 engagement, rather all will share their skepticism, and doubts, to converge (hopefully) to viable solutions, or to clearly mark as "BS" all that doesn\'t stand peer-review...
Trying to have also a clinic in this context, would defeat the goal of maintaining everyone constantly on watch, peer-reviewing and critiquing/re-framing what is said... imagine a University lecture, at the end of which students wait for the talk to be finished, to approach the professor privately, rather than asking/commenting in public... we don\'t want that.
"Speakers", here, are sort of provokers, offering high quality insights into what\'s going to be made, that has to be digested by the conversation of the "public". Presentations should be short, and to the point, as appetisers for the question time. No project-specific answers will be sought (not by design, at least).
', u'post_id': 6479, u'date': u'2017-07-26 14:18:18'}, {u'user_id': 4, u'title': u'Maybe we can set the expectations and purpose ', u'comment_id': 33595, u'content': u'Maybe we can set the expectations and purpose a bit better. I hope to learn about:
\n\nI second @alberto , I like the idea of doing the CERN style review. This won\'t allow us in depth 1-on-1 meetings, but it will allow more people to share in the insights.
\n\nCan we do a combination perhaps @markomanka ? The topic of the CERN style debate can be a specific problem of one of the guest projects. Experts in the debate, projects in the audience to interfere.
\n\nIt hopefully then approaches the usefulness & specificity of the \'clinic\' format, allows for broader interaction and discussion solutions to specific problems should decrease the influence of \'life-capital investments\'.
\n\nThere is some preparation work then to find one or two projects and formulate questions well. Those projects ideally have presented themselves already in a different session, before the debate.
\n\nShall we move forward with this?
', u'post_id': 6479, u'date': u'2017-07-26 11:59:43'}, {u'user_id': 4, u'title': u'Not my call to make... but I would ', u'comment_id': 33531, u'content': u'Not my call to make... but I would be really curious to try CERN style review.
Even though it does seem like a methode to decide something. What are we deciding at OV?
I would like to invite a strategic decision at this point... would we rather like to follow a "seminar+clinics" scheme, as to offer an hands on reflection on real study cases to the participants bringing up their experiences, or running a conference style debate on the topics, with experts of diverse background?
\n\nFor the latter, I would like to import the form of open peer review traditionally adopted at CERN when taking community decisions: anyone has the right to speak/question, and the speaker \u201csurvives\u201d only if the reply is deemed satisfactory\u2026 since the audience can interfere, and \u201ccounterattack\u201d those asking questions, fairness is pursued by skin in the game, rather than gentlemen\u2019s moderation.
\n\nI am quite agnostic about what this session should look like, as I believe any of the alternatives discussed so far with @Alberto and @winnieponcelet would bring important learning opportunities, but a call should be made as early as possible.
\n\nMy 2 pennies of wisdom: although it takes a bit more to arrange the clinics, they tend to be smoother, because people feel challenged in the 1-on-1 meetings, but pride doesn\u2019t enter the game too prominently\u2026 In a CERN-style debate, it is necessary to make sure everyone feels their weltanschauung is equally at stake, and people who have invested large life-capitals on certain ideas, will vehemently try to fight even once the audience has already decided on the sentence of the contestants.
I have had the opportunity to discover the latter is a show not to the taste of everyone...
Your calls?
', u'post_id': 6479, u'date': u'2017-07-24 12:25:59'}, {u'user_id': 854, u'title': u'Maybe...', u'comment_id': 33401, u'content': u'Maybe, @Gehan, you might have a word of wisdom for me on this topic?
@Matteo I remember a discussion arising from this post. What is the role of government? The \'operating system\' plays a major role... It\'s almost\xa0absurd to expect a\xa0bureaucrat doing full time bureaucracy work to speak the language, know the needs etc. of projects that are relevant. Yet if the bureaucrat spends more time on oversight and less on command & control, leaving the latter to the people who have experience in the field, it\'s probably more effective and\xa0cheaper.
\n\nAnother thing I\'ve been thinking about in the context of Open Insulin. Leaving aside if Open Insulin is the right approach, consider any project that is a long shot, ambitious and with a potential big impact on many parts of the world. It\'s hard to disagree (in my opinion) with long shots for systemic changes in eg. pharma industry, based on ethics. I haven\'t met anyone who is against it\xa0in principle, also not in government.
\n\nThough only a smaller part of such an impact is realised in the city where the project resides. In my experience, a city wants to support projects that have an impact in their city, the impact beyond that is of minor importance. Or, more extreme, they will deliberately not\xa0support you so that you go search funding up the chain, such as regional grant, because that results in an inflow of money into the city from elsewhere.
\n\nNot so popular to be funded by the city, due to the above, but also because they would\xa0rather support projects with an\xa0immediately\xa0visible impact, such as helping disadvantaged children or establishing a development aid link with an African town. This is of course great, but it is a form of symptom treatment, and for the cynical, mainly about the funder\'s next election cycle. Policy now seems more about\xa0adding new rules and exceptions to help very specific groups who have been disadvantaged, rather than taking ambitions decisions that address the root and affect everyone - from the same disadvantaged to the shrinking group of privileged people - to change the legacy of outdated rules. It should be a balance, naturally, but it\'s way skewed to the wrong side now.
\n\nA trick is to tie some concrete city level impact to the project - I guess OpenRampette would be a good example. Yet this is not always possible, especially in more complex projects.
\n\nHigher up there\'s also close to no room for eg. an Open Insulin\xa0in more formal and bigger funding programs. Rigid structures, but also lots of lobbying going on from, in the case of Open Insulin, big pharma. There, your chances are tiny and attempts are expensive. Ping @Lucy , maybe you can also pitch in.
\n\nPersonally I see potential in the role of the city, just because there seems to be more room to be creative for those who dare. These long shot projects are not expensive in money either, especially considering the potential outcome. If five girls & guys in their garage can have a shot at changing an industry, imagine what a city could do.\xa0How badass would it be to read in the newspaper: "The city of Milan supports open source treatment for diabetes induced blindness".
\n\nSo should a city support what emerges in their city, even if the impact is proportionately realised mainly outside the city? Considering they are dead in the water\xa0elsewhere, is it ethical\xa0not to support these projects at a city level?
', u'post_id': 6479, u'date': u'2017-07-20 13:36:00'}, {u'user_id': 4, u'title': u'Like this', u'comment_id': 33391, u'content': u'It latches nicely onto work we are doing on a different project, witn UNDP: @Hasmik , @gazbia-sorour , @Tinatin , @Inge , @Max_Perry , @LilitMidoyan ...\xa0
\n\nThe topic is different from care: we are looking at bottom-up urbanism, city-as-a-wiki etc. But it is still community-based, and seeks to empower community capability and enable it towards public good goals. This is very hard for local governments to do, because giving communities space requires, paradoxically, for them to behave in a way that might appear arbitrary. Why are we letting people do things in this park, but not that square over there? Because the people who are interested in this park are aligned with the spirit of contribution to public good,\xa0and\xa0they\xa0have capability to deliver. Who says so? We do. This is the polar opposite of @Matteo \'s "strict rules often lead to standard, controlled and predictable output": if you, as a government,\xa0open yourself to bottom-up innovation you pay a price in terms of strict rules.
\n\nIn David Graeber\'s book on debt there is an aside that stayed with me, and might solve the policy maker\'s dilemma. It is well known that Imperial China invented bureaucrats. The Mandarins were civil servants, centrally selected on the basis of merit and centrally trained. But they were not given a rulebook to apply. China is big, and communications were poor and slow; also, it was very unstable, with peasant revolts sprouting out every year.\xa0The Emperors knew that Mandarins would be on their own in distant provinces, and they would need to take quick action to prevent and quell revolts. So, they were trained in Confucian ethics rather than "law" as we understand it, and instructed to do their best to make sure the people were content and did not starve.
\n\nIn modern terms, their operating mode was result-oriented rather than process-oriented, and buttressed by ethics rather than rules. I think Amartya Sen\'s work shows that this would be enough to ensure accountability. Which means, governments could, in principle, be hierarchical\xa0and\xa0creative\xa0and\xa0accountable. But that\'s not easy to do in process-oriented, formalistic legal systems and cultures.\xa0
\n\nIs this something we could be discussing? Maybe invite someone from UNDP?
', u'post_id': 6479, u'date': u'2017-07-20 08:43:00'}, {u'user_id': 854, u'title': u"That's the kind of provocations I am looking for", u'comment_id': 33388, u'content': u'Hi @Matteo
\n\nthank you for your reaction.
\n\nThat\'s absolutely not off topic, and quite in line with what we have been observing/hearing during OpenCare. Another side of this, correct me if I am wrong, seems to be the fact that most of the times once public institutions get wind of the interesting bottom up activities around them, they often try to replicate/absorb them at face value... investing in a snapshot of what seems to be their current value proposition, but failing to capture the path that attracted momentum, and their value chain.
\n\nIn facts, many initiatives have little EXPLICIT awareness of their values and situation, and it is perfectly fine for them, as they run on experience and shared stakes... but transfer/reproduction efforts\xa0complicate\xa0things quite a bit...
\n\n...on the issue you point out... Could one\xa0challenge be the denial of the need of more than just one model to describe reality?
\n\nIn care this is quite problematic... bureaucracy tries to optimize for one model, typically fine tuned around middle tendencies of distributions in public health, but this operation introduces important fragilities, as eloquently discussed by Nassim Taleb...
\n\nLooking forward to your further considerations
In CoM\'s experience, ethics and data protection in public / open source science projects (@Alberto) belong to public spending decisions. Since one of the major leverage that public administrations can use to include private partners in public policies is to finance them with taxpayers\' money (to keep it simple, I will not mention PPPs, which also have pitfalls), they need to make rational, fair and transparent decisions. This is where public procurement rules apply. However, strict rules often lead to standard, controlled and predictable output. When it comes to innovative_community-based_care related\xa0policies, effective solutions can come from spontaneous practices that we have to approach in a different way (what if they do not know there are public funds?), we have to support\xa0in a different way\xa0(what if they can not write projects proposals efficiently?) and we have to relate\xa0to in a different way (what if we don\'t understand their languages). In other words, we might be fairly-ineffective or efficiently-unfair. I hope this isn\'t too much off topic @markomanka.
', u'post_id': 6479, u'date': u'2017-07-19 13:57:14'}, {u'user_id': 854, u'title': u'Very relevant', u'comment_id': 33348, u'content': u'Hi @alberto,\xa0
\n\nas discussed on hangout I find ethics, in general, to be a very powerful learning point for most, if not all, the open care projects we have met. Well beyond the challenges of GDPR, there is in general a certain semantic confusion about what "open" would mean, and a lack of self-reflections about where value is produced, and for whom... Defending ethics in the absence of such fundamental insights\xa0is often challenging, and most conversations get framed as box-ticking before adequate discussion and provocation.
\n\nThat being said, I would like to ask @winnieponcelet (we can discuss the details\xa0tomorrow during our call) to evoke an expression of interest with real questions/stories by the groups that would join this session at the Village.
\n\nIn facts, we have to be realistic about the time limitations at the Village, and what we can usefully discuss there and then...
\n\nOn a related issue, I would like to collect questions for the ethics board, from the consortium partners (@Lakomaa , @Rossana_Torri , @Alberto , @melancon , @Costantino ), and from the guests ( @WinniePoncelet ), to hold a private, and a public question times with our advisors... most likely via hangout/skype, during the Village.
\n\nCollecting questions/topics is fairly important, as of course the advisors need time to understand the proposed issue, and prepare a conversation. (Let\'s give a deadline of at least one month ahead of the Village?)
\n\nTalk soon,
', u'post_id': 6479, u'date': u'2017-07-18 12:39:27'}, {u'user_id': 4, u'title': u'Let Marco explain this', u'comment_id': 11099, u'content': u'@markomanka , what do you think?\xa0
\n\nI would certainly welcome an intro to GDPR with an open source perspective.\xa0
', u'post_id': 6479, u'date': u'2017-07-10 15:25:11'}, {u'user_id': 3362, u'title': u'Relevant!', u'comment_id': 7707, u'content': u'This is a tough subject for citizen science projects to look into themselves. It is relevant for those who are already further in the project, like echOpen or Open Insulin, or those starting out, to keep it in mind. When doing something radically open, the last thing you want is to compromise the project by making\xa0avoidable missteps, legally or ethically.\xa0
\n\nI like the idea of a wiki. How would such a session look like? Is it a documentation effort of what can be found on the web, or experts sharing insights and projects judging the relevance, or something else?
\n\nIf needed, are there other experts to invite\xa0@markomanka ?
', u'post_id': 6479, u'date': u'2017-07-10 13:37:33'}, {u'user_id': 4034, u'title': u'Great Alberto, I quickly read the backstory of ', u'comment_id': 38658, u'content': u'Great Alberto, I quickly read the backstory of Open Spaghetti and your reasons why open gov is important to you. As I learn more about the Italian case, perhaps I can provide some insight or moral support as you & others propel the open data agenda forward.
', u'post_id': 38590, u'date': u'2017-10-22 10:00:00'}, {u'user_id': 4, u'title': u'Wow, Code for America does great work! I ', u'comment_id': 38629, u'content': u'Wow, Code for America does great work! I am an open data activist myself (here\'s the story). I have been for seven years now, and plan to continue. Hopefully the Open Village will meet open data at some point, though how is not yet clear to me.
', u'post_id': 38590, u'date': u'2017-10-20 12:23:01'}, {u'user_id': 4034, u'title': u'Absolutely! I call it a hobby, but I ', u'comment_id': 38611, u'content': u"Absolutely! I call it a hobby, but I am an all-in believer in mushrooms: from their medicinal benefits directly supporting human (+other species') health, to their role as an accessible food source (food security), to their potential for applied mycoremediation (environmental health). I try to sneak in mycelial metaphors socially when I can, too. I've been lucky to have met members of Bay Area Applied Mycology (BAAM) though their outreach workshop in inoculation at Counter Culture Labs, because now I'm active member & acolyte.
", u'post_id': 38590, u'date': u'2017-10-20 08:49:32'}, {u'user_id': 3362, u'title': u'Welcome @ramykim \n\nDo you see your mycology ', u'comment_id': 38601, u'content': u'Welcome @ramykim
Do you see your mycology hobby and your health work meeting somewhere?
', u'post_id': 38590, u'date': u'2017-10-20 06:46:10'}, {u'user_id': 4, u'title': u'just noticed no notification so far to Mr. ', u'comment_id': 38640, u'content': u'just noticed no notification so far to Mr. Poncelet, so here we go: @winnieponcelet.
', u'post_id': 38606, u'date': u'2017-10-21 07:54:05'}, {u'user_id': 4, u'title': u'\n\nwinnieponcelet:\nI have my community of doers, but ER ', u'comment_id': 38628, u'content': u'\n\n... and that is a confirmation of @ezio_manzini\'s theory about "communities of interest" and "communities of action".
\n\n(Of course I agree with Winnie. Intellectual development and friendship are also why I am on this particular ride).
', u'post_id': 38606, u'date': u'2017-10-20 12:02:13'}, {u'user_id': 3804, u'title': u'Hi Nadia!\n\nIf tomorrow works and there is some ', u'comment_id': 38637, u'content': u"Hi Nadia!
\n\nIf tomorrow works and there is some time I'm totally down. Sorry for the delayed response.
", u'post_id': 34451, u'date': u'2017-10-20 21:28:03'}, {u'user_id': 3818, u'title': u"Yes @nadia & @aquamammal\n\ncouldn't make it yesterday, really ", u'comment_id': 38610, u'content': u'Yes @nadia & @aquamammal
\n\ncouldn\'t make it yesterday, really want to hear a little about it.
\n\ngot a recorder (thanks to laurel), I\'m in the main hall all day..
\n\nS.
', u'post_id': 34451, u'date': u'2017-10-20 08:09:11'}, {u'user_id': 8, u'title': u'Hey @aquamammal Thanks for the session today. Still ', u'comment_id': 38578, u'content': u'Hey @aquamammal
Thanks for the session today. Still chewing on it in an effort to calm my brain enough to sleep...
Some of us are going through the notes that we collaboratively produced, but it was so fast and rich I think they don\'t do the presentation justice. Basically people got the bulletpoints on the slides but not much else. So we need to flesh it out. Are you around tomorrow for an interview/chat with me if @SyMorin or @dailylaurel can do an audio or video recording (whatever feels most comfortable)?
\n\nAlso, maybe you have speaker notes to add to the document ?
', u'post_id': 34451, u'date': u'2017-10-19 23:25:52'}, {u'user_id': 3804, u'title': u'Hey Alberto,\n\nTotally on point. My description actually should ', u'comment_id': 34519, u'content': u'Hey Alberto,
\n\nTotally on point. My description actually should have been more specific. Definitely need to address lower as well as upper bounds. The way that our technology and myths drive us towards individual pursuits and promised reward/glory is some sort of emergent divide and conquer in my book. Yes, I would like to put forward prescriptive sizing for different types of health scenarios, based in precedent, and backed by data
What about lower bounds? At The Reef, with 3-4 people, if we want to have a communal dinner we have to make a (small) effort. Exert discipline. But at the unMonastery Matera, with maybe 10-12, this was just natural. Any one person was free to bail out on meals for whatever reason. But everyone knew that they could count on dinner to happen, with 6-10 people. The person on kitchen duty would ask around to get an idea on whether it would be more like 6 or more like 10, but no big deal either way, leftovers would be put away and quickly wiped out by the next hungry unBrethren.
\n\nIn other words, when you get to 6-8 people the system of communal meals with "kitchen duty" combines conviviality and individual freedom. Also, it is very, very economically efficient: it turned out we had overestimated the running costs by 50%! I see a risk of breakdown by "too few" as by "too many". I admit never having read Robin Dunbar\'s work. Maybe there is something about the optimal size of human groups, not just their maximal size.
', u'post_id': 34451, u'date': u'2017-08-18 20:23:48'}, {u'user_id': 3804, u'title': u'Yes! And it seems that what has worked ', u'comment_id': 34517, u'content': u"Yes! And it seems that what has worked worked also wouldn't have as much data available because many have been erased from our public consciousness.
\n\nI'm definitely interested in what would work in the now. I'm game!
", u'post_id': 34451, u'date': u'2017-08-18 18:00:14'}, {u'user_id': 3804, u'title': u'Hey John, Thanks for sharing experience. The point ', u'comment_id': 34516, u'content': u'Hey John, Thanks for sharing experience. The point about the "ability to improve standard of living" is really illuminating. I will chew more on that and incorporate it into the session flow.
\n\nMy hope for the session isn\'t to uncover what the actual numbers are, it\'s to establish that there are limits (more like ranges of limits), and what that means for us in terms of organizing and health. 400 is awesome. You guys must have had great systems in place that addressed the local contexts really well.
\n\nI would wager that there\'s much more to the limit than the neo-cortex. Land carrying capacities and economic conditions should be respected and also addressed. Trying to keep it to community health, so thankfully should be less ground to cover than trying to reframe the whole of this society (though time well tell just how easy it is health isn\'t straight forward at all~)
My experience living in a large intentional community showed me that you can get that number higher - maybe up closer to 400 or more - if you have a high level of agreement among the people. And there have been large monasteries, Amish communities, and the like that succeed. But such groups sit at the high end of personal and social agreement.
\n\nMy experience at The Farm was that with fewer than 400 I knew everyone by their first name and I knew something about them and their personalities and styles. If I lived in a household with them or worked with them I knew them still better, as you would expect. As that number went higher our ability to really know each other well diminished.
\n\nHowever, there were benefits to bigger numbers because it meant a greater diversity of skills and community services.
\n\nWhere it began to really break down was when the population outgrew our ability to improve our standard of living.
\n\nI said at one point in this weeks community call that there can be a risk of "biting off more than you can chew." We did that. It didn\'t go well, even though that period (late 70s - early 80s) was also characterized by us doing some of our most valuable contributions to the larger society such as the Bronx ambulance service and the bilingual clinic in DC and the soy protein project in Guatemala. By the way, that clinic and that soy dairy still operate on their own even though we no longer have a direct hand in it.
', u'post_id': 34451, u'date': u'2017-08-18 14:44:26'}, {u'user_id': 4, u'title': u'IMHO this session would benefit from data. What ', u'comment_id': 34475, u'content': u'IMHO this session would benefit from data. What has been tried? What worked, what imploded?
\n\nPing @johncoate and @lasindias, who have perhaps the broadest databases on peer-to-peer care (file under "communities") I know. @lakomaa and @tino_sanandaji might also have insights based on their own work and data.
', u'post_id': 34451, u'date': u'2017-08-17 22:03:34'}, {u'user_id': 3367, u'title': u'Harrison, love the proposal. I think this is ', u'comment_id': 34473, u'content': u'Harrison, love the proposal. I think this is such a great topic for this community as we work with issues around enlarged communities and the balance between hyper-local and international.
', u'post_id': 34451, u'date': u'2017-08-17 20:12:53'}, {u'user_id': 8, u'title': u'During some of the sessions today I got ', u'comment_id': 38580, u'content': u'During some of the sessions today I got the feeling that several people in a room share same values and ideals, but are coming at things using really different vocabularies for whatever reasons. To understand one another we need some kind of glossary of terms so a reading list would be helpful as a starting point.
', u'post_id': 34003, u'date': u'2017-10-19 23:39:34'}, {u'user_id': 4124, u'title': u"hi Nicole !I'm also very interested on those ", u'comment_id': 38469, u'content': u'hi Nicole !
I\'m also very interested on those topics. I recently read a zine called "Burning Women - the European Witch Hunts, enclosures and the rise of capitalism", by Lady Stardust.
(find it here : http://we.riseup.net/assets/246955/Burning+Women.pdf)
Well, the content is summarized in the title, but it also talks about the rise of medicine as opposed to the grassroots feminine knowledge of herbalism.
I heard about a bigger book called "Caliban and the Witch", by Silvia Federici that develops the subject further, but I couldn\'t find the time to read it yet.
Hello @nicole, welcome from me too. Woodbine is on a big quest (intimidatingly so, even), so any extra intellectual firepower is sure to be welcome. What kind of an academic did you use to be (or still are)? What are you trying to build within the Woodbine framework?
', u'post_id': 34003, u'date': u'2017-08-06 09:15:51'}, {u'user_id': 3367, u'title': u'Welcome Nicole! ', u'comment_id': 34015, u'content': u'Welcome Nicole!
', u'post_id': 34003, u'date': u'2017-08-05 19:27:38'}, {u'user_id': 3973, u'title': u'@pin - would love to meet with someone ', u'comment_id': 38545, u'content': u'@pin - would love to meet with someone involved with Women on Waves and / or Women on Web -- they do amazing work -- if you have any contacts who could put me in touch, that would be amazing. Till soon!
\n\n~ Eugenia Manwelyan
School of Apocalypse
@liz_biospherex is going to be presenting about reproductive sovereignty at the festival, will def put you in touch.
', u'post_id': 38185, u'date': u'2017-10-18 06:45:33'}, {u'user_id': 4103, u'title': u'womenonwaves, esential ! ', u'comment_id': 38471, u'content': u'womenonwaves, esential !
', u'post_id': 38185, u'date': u'2017-10-18 02:37:19'}, {u'user_id': 4061, u'title': u'If you are travelling to the Netherlands it ', u'comment_id': 38439, u'content': u'If you are travelling to the Netherlands it could be maybe nice for you to get in touch with this organisation https://www.womenonwaves.org/en/page/2928/contact
They work on access to safe abortion through multiple ways of empowerment (drones, ship campaigns, etc)
They also realised an interesting documentary few years ago http://vesselthefilm.com
Natalia -- That's amazing! Do you mind sending intro to my personal email account - emanwelyan@gmail.com
\n\nThank you!!
\n\nEugenia Manwelyan
917-710-7496
hello here !
\n\nI'm coming to the meeting so we can find to talk about this topics as I'm one of the ones we start the Gynepunk project I will be happy to find and share with you this and other experiences from plants to hardware hacking!
\n\nsee you there !
", u'post_id': 38185, u'date': u'2017-10-16 18:18:30'}, {u'user_id': 137, u'title': u'Hey Eugenia!\n\nyou got lucky, one of my best ', u'comment_id': 38252, u'content': u'Hey Eugenia!
\n\nyou got lucky, one of my best friends is a sex educator, with years of experience in Poland now living in London and working in the same field. I will connect you via email
prolly @winnieponcelet ? maybe also @mariekebelle knows the art scene in Brussels...possibly also @natalia_skoczylas (remember the guy we met yesterday - he looks like he knows things :))
', u'post_id': 38185, u'date': u'2017-10-12 18:56:42'}, {u'user_id': 3362, u'title': u"That's clear, thanks. Backcast seems like a good ", u'comment_id': 38480, u'content': u"That's clear, thanks. Backcast seems like a good exercise for this topic, and a structured way at that. I have facilitated such a brainstorm before and could do it at the workshop. Unless someone else rises to the opportunity, of course.
", u'post_id': 859, u'date': u'2017-10-18 09:43:20'}, {u'user_id': 3362, u'title': u'Great! The panel will be on Day ', u'comment_id': 38479, u'content': u'Great! The panel will be on Day 1 and this workshop is on Day 2. I will be at the panel as an active audience member and documenting thoroughly with the Open Insulin project in mind.
I would very much like to join this session and learn more about the foundations of this visionary project, the current team's structure/framework, and the needs it plans to address. Some of the questions you've raised have a parallel focus as the session on Infrastructure for autonomy. (Which session comes first you think?) It would be ideal to if we can pull the learning and conclusions from one to the other.
", u'post_id': 859, u'date': u'2017-10-18 09:04:04'}, {u'user_id': 3746, u'title': u"My 'reality-based' approach in my action-based ('learning by ", u'comment_id': 38475, u'content': u'My \'reality-based\' approach in my action-based (\'learning by doing\') research is to first establish the desired outcome and to then \'Backcast\' to firstly, identify the resources necessary to achieve that outcome and secondly, the optimal institutions and instruments to mobilise these resources, as far as possible in \'money\'s worth\' rather than money.
\n\nNote here by \'institutions\' I do not mean organisations which have a legal existence independent of their membership, but rather nested/networked agreements between stakeholders (the aim is for a Platform Co-op consisting of a co-op of co-ops, association of associations or even club of clubs) to the agreed common purpose These multi-stakeholder co-ops may or may not be within national corporate frameworks: the global framework agreements requires careful thought. @cindys
\n\nAs with any concept we will need an initial proof of concept implementation & location.
', u'post_id': 859, u'date': u'2017-10-18 07:25:41'}, {u'user_id': 3362, u'title': u'Some notes in preparation of this session. Anthony ', u'comment_id': 38465, u'content': u'Some notes in preparation of this session.
Anthony will present an introduction to Open Insulin. He will focus on the organisational side of the project and the obstacles this entails. This has two aspects that are immediate needs for Open Insulin:
Desired outcomes for the project:
\n\nWe will discuss a set of questions, aimed at coming up with actionable outputs. Depending on the amount of people showing up, it may be beneficial to split into groups briefly, before sharing insights collectively again.
\n\nInput and remarks are very welcome. Ping @cindys , you probably have valuable experience with similar challenges.
', u'post_id': 859, u'date': u'2017-10-17 21:55:38'}, {u'user_id': 3362, u'title': u"I'm curious to explore the micro/macro dynamics. The ", u'comment_id': 37918, u'content': u"I'm curious to explore the micro/macro dynamics. The current idea with Open Insulin is to bring production to a city level.
\n\nThere are synergies in scale, and costs. In my view, it is a good strategy to start small and observe where it stops making sense to grow certain aspects. Eg. physical production might stop being interesting to scale beyond the city level, but it might make sense to keep growing a shared pool of financial resources so that it spans a country. And perhaps distribution hubs at a neighborhood scale.
\n\nFirst and foremost things must make sense at a micro level, and can then be minimally tweaked to also make sense as part of a bigger whole. Yet the priority is always the micro, or else the macro is fragile.
", u'post_id': 859, u'date': u'2017-10-09 08:13:55'}, {u'user_id': 3746, u'title': u'Hi Winnie. \n\nOpen Insulin is of great interest ', u'comment_id': 37459, u'content': u'Hi Winnie.
\n\nOpen Insulin is of great interest in the context of my action-based (ie applied, rather than theoretical) research into resilience.
\n\nOpen Insulin represents what I think of as a global (\'macro\') application of the resilient institutions (aka agreements) and instruments I have been researching and developing. Open Care & Open Villages are (by definition local) resilient \'micro\' applications.
\n\nOf course we network resilient micro, the result should be resilient mezzo and macro.
Looking forward to the discussion.
\n\nBest regards
\n\nChris Cook
', u'post_id': 859, u'date': u'2017-10-04 13:16:51'}, {u'user_id': 3362, u'title': u'During my visit in Oakland, Anthony and I ', u'comment_id': 37440, u'content': u'During my visit in Oakland, Anthony and I discussed the organisational side of Open Insulin. With methods for collaborating globally being one aspect, another is what to do with the open insulin protocol once it is there.
\n\nIn order to keep incentives aligned and the decision making power with the patients, we came up with the idea of a patient cooperative to govern a sort of generic insulin manufacturing company. Everyone has a non-transferrable share and is involved in the decision making process of what happens with the gains from the cooperative\'s activities.
\n\nDo patients want cheaper insulin? That would be possible.
Do patients want to invest into research for better forms of insulin? That would be possible.
Do patients want a combination, where the financially comfortable patients invest their gains in better insulin, while the poorer choose for cheaper insulin? That would (or should be) possible, although it will require more complex forms of governance.
Do patients want to invest in an actual cure, instead of remaining dependant on insulin as a treatment? That would be possible.
Ultimately, resources would stay inside the circle of people who stand to benefit the most from the productive activities, without external predators to capitalize on their ilness.
\n\nThere are many questions, limitations and remarks around design and implementation of such a cooperative. We hope to explore those during the workshop part of the Open Insulin session at OpenVillage Festival. It will be a collaborative brainstorm format, focussed on concrete solutions, rather than a philosophical exploration of the idea.
\n\nI hope we can already start off the discussion here in anticipation of the event. That will make our meeting in two weeks much deeper. Ping @dfko @chrisjcook @damiano , you might find this interesting. Do you have any pointers from your own work?
', u'post_id': 859, u'date': u'2017-10-04 07:41:47'}, {u'user_id': 3, u'title': u'+1 session on Collaboration, blueprints etc', u'comment_id': 15045, u'content': u'@dfko your project inspires\xa0many people around here, myself included. I spoke about it any chance I got at meetings and events..
\n\nYou mention the challenge of keeping continuity within the group: how large is the group now? does it help to have community coordinators like Winnie with clear mandate to\xa0support\xa0knowledge sharing and convening of groups, even\xa0more so than the hard science\xa0aspect of the project?\xa0
\n\nAlso, isnt there stuff to be learned from\xa0similar networked groups around the world ? Nightscout have also prompted high levels of interest\xa0spanning many countries, have they found new ways, better ways..? I think the lessons from a workshop like that stand to benefit any networked organisation or collective, including edgeryders if you ask me. Collaboration, especially over the internet and between people who barely see each other face to face, well... it\'s damn hard. Keep it up!
', u'post_id': 859, u'date': u'2017-06-08 14:42:29'}, {u'user_id': 3362, u'title': u'How do we organize open science?', u'comment_id': 7889, u'content': u'Hi @dfko ! Thanks for posting your session proposal draft. Your remarks about information sharing and organization connect with me, not only because being part of the international Open Insulin collab. Also because when talking to people in several open and participatory science projects over the last year, the same questions keep popping up.
\n\nPerhaps this is a good challenge to solve with the participants during your session: how do we best organize collaboration and information sharing in large community driven science projects?
\n\nAn outcome of this workshop could be a framework you can readily use in the project, and that others can use for their projects.
\n\nThe other part of the session can be you sharing experiences, outcomes or anything you think is worth telling.\xa0
\n\nWhat do you think?
', u'post_id': 859, u'date': u'2017-06-08 10:31:30'}, {u'user_id': 4061, u'title': u'thank you for sharing your experience: it is ', u'comment_id': 38456, u'content': u'thank you for sharing your experience: it is really inspiring... a breath of fresh air!
', u'post_id': 5886, u'date': u'2017-10-17 17:22:14'}, {u'user_id': 2915, u'title': u'Impressive', u'comment_id': 31632, u'content': u'Great work. \xa0I salute you.
', u'post_id': 5886, u'date': u'2016-10-06 15:25:29'}, {u'user_id': 2915, u'title': u'Twas ever thus..', u'comment_id': 30781, u'content': u">\xa0every one of those terms has an ideology behind it
\n\nAbsolutely correct.
\n\nOver the past eight years, in addtion to other duties as a manager of an organization, I administered the health care benefit for my employees. \xa0This all took place during the whole Obamacare/socialized medicine debate.
\n\nAs you know, in politics, one gets ahead by identifying and demonising a bad guy. \xa0In that debate the bad guys were the health insurance companies. \xa0Plenty of blame to go around with that group, no question.
\n\nBut in shopping for the best plans, I noticed something interesting. \xa0If we opted for a plan where the pharmaceudicals were all generic, the premiums for each employee was reduced by half. \xa0By half! \xa0No other cost reduction option even came remotely close to that. \xa0So,\xa0if half the expense is going to the drug companies for their proprietary drugs, then shouldnt they have figured a little more heavily in the national debate? \xa0(Actually it did with one candidate - Bernie Sanders.) \xa0
\n\nOne would think, but in my view, that would have complicated things too much for the huge numbers of people who need everything in the public sphere dumbed down so they can grasp it. \xa0(I hate to say such things because it sounds so elitist, but after decades of involvement with the public dialogue I can't avoid that conclusion.)
", u'post_id': 5886, u'date': u'2016-09-19 18:55:52'}, {u'user_id': 393, u'title': u'not so many', u'comment_id': 30187, u'content': u"I can't speak to places like Germany and Sweden, but the numbers of refugees in most EU countries are very low compared to the overall population - and the ones who managed to get there tend to be younger and more able, so not placing huge demands on health care per se.
\n\nThat's an interesting point about the apoliticality of Open Care - in the party political sense, of course it should not be aligned with a particular side. But if politics just means 'how we organise things in our society', then it is very much political - and if it does bring about significant change, it's bound to be seen as such by some people.
\n\nA current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.
", u'post_id': 5886, u'date': u'2016-09-19 18:42:22'}, {u'user_id': 2915, u'title': u'But with so many refugees now', u'comment_id': 29375, u'content': u'placing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?
\n\nAlso, Open Care is a distinctly apolitical effort, but after it gains some traction both specifically and as a meme that propagates, I see a danger in attempts at co-opting or using it by political forces wanting to channel the narrative - and the money - to a particular agenda. \xa0Of course this is from someone in the US where everything is political on some level.
', u'post_id': 5886, u'date': u'2016-09-19 18:21:10'}, {u'user_id': 2915, u'title': u'American opinion seems easy to manipulate', u'comment_id': 28630, u'content': u'in certain ways. \xa0Millions of not very bright people who derive their understanding of the world through a mix of TV and their own predjudices and assumptions view the healthcare status quo as being one where they have more individual choice. \xa0(Obanacare = socialism and "death panels.")\xa0Over here that is like a core religious belief, so if you can convince people they will have fewer choices then it isn\'t that hard to get them to oppose it, even though it is not in their economic interest to do so. \xa0Indeed the fact that Ronald Reagan got elected largely with the support of such people is a perennial case in point.
', u'post_id': 5886, u'date': u'2016-09-19 18:46:44'}, {u'user_id': 393, u'title': u'US/UK', u'comment_id': 28236, u'content': u'Thanks, @Alberto, you are right, I was mostly thinking of the UK example, and the way in which healthcare at the point of delivery is seen as a neutral, technocratic institution. The recent junior doctors\' strike shows the same pattern: doctors being criticised for \'politicising\' healthcare, as if everything about it is not already political.
\n\nBut I would venture [not living there, but observing from afar] that there is a similar issue in the US - people think of the status quo as \'normal\' and don\'t see that it already has a political dimension, so attempts to disrupt the massively wasteful insurance/medical cartel [as Obamacare made some small steps to do] come up against lots of resistance even from people who might benefit from change.
', u'post_id': 5886, u'date': u'2016-09-19 18:19:25'}, {u'user_id': 4, u'title': u'You are unusually politically sophisticated!', u'comment_id': 27204, u'content': u'I may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product:\xa0"Support us, and there will be\xa0more money for health care!". They can do this because\xa0everybody\xa0agrees that funding public health care is a good thing. In this sense, even though it\'s still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it\'s part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.\xa0
\n\nWe (Italians, possibly the British too)\xa0do not think of health care as political because it\'s not divisive as a basic choice. I appreciate ours is not a sophisticated position.
', u'post_id': 5886, u'date': u'2016-09-19 18:03:42'}, {u'user_id': 2915, u'title': u'In the USA all healthcare is political', u'comment_id': 26630, u'content': u'"Obamacare" is arguably the number one political debate along with immigration and national security.
\n\nAnother aspect is student loans. \xa0For years students have taken out loans to attend universities. \xa0For years the government set low interest rates and wasn\'t aggressive in going after delinquent accounts. \xa0That changed some years ago and those loans are now both very expensive and likely to scar your entire working life if you don\'t pay them on time. \xa0I submit that is has a chilling effect on people seeking careers in medicine and health care at the higher levels. \xa0And it is certainly a huge reason why there is such a shortage of general practitioners compared to specialists. \xa0A GP has to take many more years to pay off their student debt.
\n\nI could go on and on. \xa0But the point is that it is impossible to separate health care from the political debate in the US, and probaly everywhere else.
', u'post_id': 5886, u'date': u'2016-09-19 17:17:32'}, {u'user_id': 2569, u'title': u'agree', u'comment_id': 24586, u'content': u'"Healthcare is largely seen as a \'value-neutral\', apolitical issue, and it\'s so important to put it back in its political context"
\n\nCouldn\'t agree more with you here. Certainly, given what is happen in the UK at the moment it is really important that both the wider community and the medical professionals themselves understand that they stand in a highly politicised space. I think it\'s time we stopped demanding our doctors and medical practitoners pretend they somehow exist outside of the politcal\xa0world around them
', u'post_id': 5886, u'date': u'2016-09-19 13:20:18'}, {u'user_id': 393, u'title': u'healthcare in political context!', u'comment_id': 21278, u'content': u'This really spoke to me. Healthcare is largely seen as a \'value-neutral\', apolitical issue, and it\'s so important to put it back in its political context, and to see that our attitudes towards it are framed by the wider values of our society. It looks like Woodbine are doing some great work on this.
\n\nAttitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn\'t have the approval of the medical \'authorities\'.
\n\nI wonder if the Woodbine folk have encountered any resistance to \'woo\' things like TCM and Feldenkrais, and if so, how they have overcome this?
\n\nI should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren\'t just about physical fitness, and that can be suitable for those recuperating or without full physical mobility.
\n\nIf you have a community library, Peter Deadman\'s latest might make a great addition - not only does it cover a whole range of areas [general health, pregnancy, ageing, etc] but it cites lots of western science to back up the older eastern practices.\xa0
', u'post_id': 5886, u'date': u'2016-09-18 16:14:04'}, {u'user_id': 116, u'title': u'ability to go beyoind it , sense making, ', u'comment_id': 16165, u'content': u'ability to go beyoind it , sense making, strnght, strong eliefe these are the words that i felt more powerful adn fitting to the video\xa0and the project description.
\n\ni feel the strength of a group with a shared mission and vision, soemthing that is strongly missing the modern individualistic society, and by the way it is based on a shared concrete experience of care.
\n\nthis is many many are looking for as a way to sense making postmodernity values, for sure attarct intersted to more concretely understand how it works, how could develop, how could go beyoing queens and the founding group.
\n\nhow much it is posisbile that co-living communities become a point of reference to each neightboorhood social growth...and then a nertwork of them become soemthing more impactful...
\n\nsingle energies are often burn out or depressed by being alone or istitutionalised or politiced....here i see a cognitive breakthru...
', u'post_id': 5886, u'date': u'2016-09-18 09:14:13'}, {u'user_id': 4, u'title': u'Great post', u'comment_id': 9115, u'content': u'... and great video (Nadia showed it to me). I am impressed, and looking forward to get to know you better.\xa0
\n\n(Adding\xa0this post to the opencare community group)
', u'post_id': 5886, u'date': u'2016-09-16 10:30:26'}, {u'user_id': 4, u'title': u'Hello @Eri, nice to meet you and welcome ', u'comment_id': 38448, u'content': u'Hello @Eri, nice to meet you and welcome to Edgeryders! Many people here, in the course of OpenCare, have been asking questions similar to yours. I have no answers of my own, but I have read plenty of super-interesting stories from others. The experience of the @woodbinehealth collective in New York City got me thinking perhaps most \u2013 they have been linking the concept of "care" to that of autonomy, for example here:
\n\n\n\nIf you want to get an idea of how many more people in here are exploring the connections between health care and society at large, you can also come to the session @amelia, @jason_vallet and myself are holding at Open Village Festival.
', u'post_id': 38430, u'date': u'2017-10-17 16:37:23'}, {u'user_id': 3775, u'title': u"(Traduzione in italiano dell'application)\n\n\nTweet-like description of the project:Moduli ", u'comment_id': 38431, u'content': u"(Traduzione in italiano dell'application)
\n\nTweet-like description of the project:
Moduli per display vocale
Need or problem you are attempting to solve:
Poter \u201cleggere\u201d un display numerico grazie alla voce, senza dover utilizzare la vista.
Beneficiary, single person and/or community:
Persone con disabilit\xe0, non vedenti o impossibilitati alla lettura.
Persone con difficolt\xe0 o ostacolati nella lettura dei valori su un display.
Solution, brief description of the project
Modulo vocale per strumenti elettronici e sensori, in grado di pronunciare numeri e frasi brevi. Progettato specificamente per piccoli dispositivi come multimetri o apparecchi domotici.
Questo modulo \xe8 stato creato per leggere, attraverso uno speaker, i valori che sono normalmente mostrati sul display del dispositivo.
Sistema composto da un hardware in grado di leggere un dato, una libreria software in grado di comporre la pronuncia in base al dato, e una serie di guidelines per rendere il progetto parlante.
Technologies already adopted or that you are planning to adopt
Small MicroController like Atmel or PIC;
Audio Player Module like WTV020 or Mini DF Player;
Mini Speaker.
WebSite (or socials)
/
License, that you are planning to use:
/
Current status/stage of the project. Considering your project, please point out the project stages that you have already accomplished.
La stragrande maggioranza degli elettrodomestici e della strumentazione elettronica attualmente presenti sul mercato si serve di un dispositivo di output il pi\xf9 delle volte visivo per comunicare e per poter interagire con l\u2019utente, tuttavia, alcuni apparecchi oltre all\u2019output visivo dispongono anche di un sistema d\u2019interazione vocale per consentire agli utenti di poter utilizzare queste tecnologie senza l\u2019uso della vista.
Ci\xf2 nonostante, la cerchia di questi dispositivi elettronici dotati di tale interfaccia alternativa \xe8 molto ristretta e spesso riguarda dispositivi popolari di uso comune come telefoni cellulari, bilance domestiche, medicali mentre invece pu\xf2 essere pi\xf9 difficile reperire almeno in italia strumenti parlanti come stazioni meteo, termostati domestici lavatrici o multimetri digitali.
Inizialmente, lavorando in un laboratorio di chimica, ho subito pensato di costruire uno strumento di misura molto utile in tali contesti, ossia un pH-metro parlante.
Il primo prototipo di questo innovativo strumento \xe8 stato realizzato attraverso un sensore di pH analogico, un modulo audio WTV020 entrambi controllati da una scheda Arduino 1, che \xe8 il cuore dello strumento.
Questa prima versione del pH-metro \xe8 in grado di pronunciare in successione la parte intera ed eventualmente la parola \u201cvirgola\u201d e la parte decimale del valore di pH quando si immerge la sonda in un liquido.
Nelle successive versioni e dopo alcune ricerche, ho pensato di utilizzare come modulo audio un Mini DF Player piuttosto che un WTV020, molto pi\xf9 problematico e sofisticato da gestire mentre come unit\xe0 di controllo ho preferito utilizzare un AtMega 328 snellendo il sistema.
Hi Winnie and thanks for your replay!
\n\nCongrats for your plans and projects!
\n\nI made this device last year when I started to work in a secondary school chemilab where pH measurements are an ordinary activity and actually there are not devices like these usable by blind or reading unabled people.
\n\nThe first prototype of this pH meter was made by me and then I asked for some support especially to design the PCB and the case.
', u'post_id': 34145, u'date': u'2017-09-22 18:22:41'}, {u'user_id': 3775, u'title': u'Hi Alberto and thanks for your replay!\n\nUsually in ', u'comment_id': 36819, u'content': u'Hi Alberto and thanks for your replay!
\n\nUsually in a chemilab, pH measurements are made to determine the acidity or basicity degree of water solutions or instead in acid-base titolations. Expecially in this case it can be usefull to store the data to make a plot and operate calculations.
\n\nMy device has a built-in speaker that shows the last measured values but if you need you can add a micro SD datalogger to the mainboard or simply link the instrument to the PC via USB and record data sent by serial.
', u'post_id': 34145, u'date': u'2017-09-22 18:09:45'}, {u'user_id': 4, u'title': u'Congrats @giulioberretta. Great idea! \n\nI am curious about ', u'comment_id': 34205, u'content': u'Congrats @giulioberretta. Great idea!
\n\nI am curious about the workflow in the lab. A blind researcher would measure pH with your meter. What\'s next? I imagine she would then have to report the value to somewhere, where, again, she\'d need an input device... How does it work?
', u'post_id': 34145, u'date': u'2017-08-09 16:38:35'}, {u'user_id': 3362, u'title': u"Hi @giulioberretta ! Nice to read you. I'm ", u'comment_id': 34177, u'content': u'Hi @giulioberretta ! Nice to read you. I\'m also involved in open source health care, open insulin specifically. As an OpenCare fellow I\'m researching how open science/tech projects can realise a higher impact more effectively.
\n\nYou mention the idea came to you while working in a lab, have you been working a while on this before the residency? What experience made you start this project? Have you had any help?
', u'post_id': 34145, u'date': u'2017-08-08 19:06:31'}, {u'user_id': 1003, u'title': u"We're very happy to support this project! ", u'comment_id': 34148, u'content': u'We\'re very happy to support this project!
go @giulioberretta go !!!!
\n\n<3
', u'post_id': 34145, u'date': u'2017-08-08 13:27:10'}, {u'user_id': 2915, u'title': u'I too look forward to meeting you. ', u'comment_id': 38338, u'content': u'I too look forward to meeting you.
', u'post_id': 38174, u'date': u'2017-10-15 19:52:38'}, {u'user_id': 4, u'title': u'Welcome, then @emsone. I am Alberto, one of ', u'comment_id': 38280, u'content': u'Welcome, then @emsone. I am Alberto, one of the older (in all senses) Edgeryders folks. Among other things, I am one of the people pushing hard The Reef. I read @noemi\'s experience with Wir bauen Zukunft: seems great, looking forward to scheming with you on Day 3, when we get down to Open Village design issues.
', u'post_id': 38174, u'date': u'2017-10-14 10:48:34'}, {u'user_id': 3, u'title': u'Definitely pitch for freestyle (onsite shoutouts) or join ', u'comment_id': 38227, u'content': u'Definitely pitch for freestyle (onsite shoutouts) or join with Wir Bauen Zukunft during the 3rd day when people will be taking about community houses and spaces for living and working.
\n\nI\'m curious who / what funds the earthship and other building workshops and seminars you mention? do you have a model? Also, paid/non paid tickets to attend? Or is your livelihood not depending on this so you do them as a hobby..? among the many other endeavors
yes works. Would be best if Alex could keep the intro to 15 minutes- that leaves me 15 for big picture presentation and 1 hr for interactive group exercise (triads)
', u'post_id': 33943, u'date': u'2017-10-15 17:03:57'}, {u'user_id': 3, u'title': u'paging @gehan here. \n\nRemember there is a separate ', u'comment_id': 38228, u'content': u'paging @gehan here.
\n\nRemember there is a separate thread for this. It\'d be great to update your Day 3 OpenVillage workshop page with a summary once all is agreed on.
', u'post_id': 33943, u'date': u'2017-10-13 10:18:12'}, {u'user_id': 3, u'title': u'Hei this sounds timely, over the past weeks ', u'comment_id': 37929, u'content': u'Hei this sounds timely, over the past weeks during the community calls we have been discussing Harvesting -
part of which is collecting insights throghout the day and reflecting in a dedicated afternoon session facilitated by curators.
@gehan has been putting quite some work in this - this is her working document, shared in our Festival google folder.
\n\nYou guys should connect to ensure that there is no duplication or mixed messages.
Otherwise, for the Session leaders a toolkit/ documentation template will be much welcome!
Ok cool works for me. @natalia_skoczylas and I have done some work to help facilitators structure documentation & sessions so that they are feeding into a concrete and usefull outcome. We\'ve done the sketching and Im digitising everything in the form of 1) a template of the final report we want everything to be feeding into 2) the toolkit for facilitators for structuring their sessions so that it feeds into it 3) instructions for all participants to include in the program booklet.
\n\n@amelia I wanted to ask you if/where you have posted a summary of keywords that are most frequent in our opencare conversation, as well as key emergent themes/insights? I think I remember a post somewhere but have forgotten where
', u'post_id': 33943, u'date': u'2017-10-08 15:53:43'}, {u'user_id': 3323, u'title': u"Good, will do. I'll make sure that my ", u'comment_id': 37861, u'content': u'Good, will do. I\'ll make sure that my hair game is on point
Currently planning on a train that leaves at 12:52. Will I be able to make that?
', u'post_id': 33943, u'date': u'2017-10-08 15:42:58'}, {u'user_id': 3, u'title': u'Hi @nadia, so we can some space for ', u'comment_id': 37725, u'content': u'Hi @nadia, so we can some space for building the openvillage conversations (in day 2 and 3): @natalia_skoczylas the table closest to the entrance at Au Quai? If not you might want to choose onsite a difft corner.
\n\nRecapping what you would be doing during the fest, if you\'re still game:
\n\n1) Welcome Day 1, 9-10:30 AM: we need to sync with @alex_levene, master of ceremony. Which means he\'d start introducing the context, the program, the teams; and rules of the space for the first 30mins.
\n\nThe for 1 hr I see you then doing big picture layout and why we are really here, asking people what they bring, expectations and so on.
\n\n2) Edge of Funding panel on Day 2, 3:30 - 5 PM: we need you to moderate
\n\n3) Day 3: I saw your preparatory document where I see you need a day?
We can get OpenVillage a room, but here is a suggestion you start at 10 with an overview for everyone, as it is now in the schedule, then you stay in the same space to run the workshop but accommodate the community building masterclass and security training. After all, those serve many of the same people no?
If you dont feel like have enough time we can end the day at 6 PM instead of 5. Let me know.
Hey guys, I think Im doing the welcome on day 1 - just want to confirm if this is accurate?
\n\nAlso, could we claim a dedicated space in the venue for "Building the OpenVillage" conversations?
', u'post_id': 33943, u'date': u'2017-10-06 11:34:24'}, {u'user_id': 4, u'title': u'Set. Go ahead. Also: we are making a ', u'comment_id': 37711, u'content': u'Set. Go ahead. Also: we are making a video. You\'ll be in it. Letting you know so you can curate your public image.
Hi all--- is this set? Can I go ahead and book the tickets? @noemi @alberto
', u'post_id': 33943, u'date': u'2017-10-06 10:53:31'}, {u'user_id': 3, u'title': u'Ok great, changes made! soz @woodbinehealth, i took ', u'comment_id': 37699, u'content': u'Ok great, changes made! soz @woodbinehealth, i took the liberty to do it because I didnt get a response from you in a while and we need to move faster..
\n\nSo Ethnography happens all morning.
', u'post_id': 33943, u'date': u'2017-10-06 10:15:45'}, {u'user_id': 3433, u'title': u'Sure @noemi Sunday morning would be good. ', u'comment_id': 37418, u'content': u'Sure @noemi Sunday morning would be good.
', u'post_id': 33943, u'date': u'2017-10-03 17:29:15'}, {u'user_id': 3, u'title': u'So maybe @Bernard would then accept his session ', u'comment_id': 37370, u'content': u'So maybe @Bernard would then accept his session to be moved on Sunday morning/ or afternoon? For what it\'s worth, this sequencing makes more sense anyway - first opencare results, then openvillage stuff - with Galway being so hands on
No can do. @amelia needs to leave for Oxford early. 12 is the latest we can do this.
', u'post_id': 33943, u'date': u'2017-10-02 20:19:57'}, {u'user_id': 3, u'title': u'Good. To minimally disrupt other sessions, I suggest ', u'comment_id': 37352, u'content': u'Good. To minimally disrupt other sessions, I suggest you guys take the slot from 10:30 AM to 3:30 PM - with a lunch break in between (12/12:30 until 2 PM..). That way we dont add a 4th parralel session in the morning at 9.
\n\nHow\'s that @alberto ? Ping @woodbinehealth
', u'post_id': 33943, u'date': u'2017-10-02 19:56:28'}, {u'user_id': 4, u'title': u'@noemi and team, @amelia and I have decided ', u'comment_id': 37321, u'content': u'@noemi and team, @amelia and I have decided to go for this.
\n\nWe would like a Day 2 morning session. Ideally, a long one, hackathon-style Masters of Networks (all morning). If not possible, we will take what we can get, ideally the first session in the morning to allow Amelia to go back to Oxford in time. Info:
\n\nBest I could do is evening of day 1 (earliest I can leave Oxford is 1:30, and will take me 4hrs at best to get to Brussels) and morning of day 2 (must be back in Ox by 5pm).
\n\nNo way around it, I\'m afraid--- my funding depends on attendance. October is a very packed month 
Nice to meet you @Eri! If you look in the Festival space here on edgeryders you can see the final program - that latest version, while pretty much final, includes a freestyle slot on Friday and Saturday afternoon where anyone can propose a session to lead, in a more ad hoc way. We will organise them onsite.
\n\nThat said, I\'m looking forward to learn about your work and what draws you to this topic - go ahead and share your story (a few paragraphs) in the same festival space (see Add Topic), then we will include you on the participants list and send you the latest updates about the event. By the way of example - my story about the failings of the Romanian medical system is here.
', u'post_id': 33943, u'date': u'2017-09-29 12:24:07'}, {u'user_id': 4061, u'title': u'Hello, I am a Pediatrician working in Brussels. ', u'comment_id': 37165, u'content': u'Hello, I am a Pediatrician working in Brussels. My interest is focused on studying how to empower social networks for revaluing community-based infancy care in multicultural contexts. If there s still place for a discussion on the theme (preferably on Thursday or Friday) I would be happy to join !
', u'post_id': 33943, u'date': u'2017-09-28 20:15:47'}, {u'user_id': 2915, u'title': u'Quite impressive credentials. Welcome to edgeryders.eu - ', u'comment_id': 36235, u'content': u'Quite impressive credentials. Welcome to edgeryders.eu - we very much look forward to your participation here!
', u'post_id': 33943, u'date': u'2017-09-14 16:40:15'}, {u'user_id': 3979, u'title': u'Dr.. Hana Mohammed Khalaf Alshloul from jordanSummary (palm)The ', u'comment_id': 36114, u'content': u'Dr.. Hana Mohammed Khalaf Alshloul from jordan
Summary (palm)
The best human personality influential for the year 2016 - High Commission for Human Development - Saudi Arabia
Canada
Sweden - Head of Department of Arabic Language and Literature - Al-Hayat Al-Jadida University - Sweden
Member of the Arab American Board
(Chairman of the Arab Cultural Association)
International Peace Coach - Canada
Certified Trainer of the World Federation of Development Sciences - Egypt
Not an initiative initiator I want - Malaysia
Member of Amnesty International - London
Gold Member - World Federation of Human Development Technologies
Member of the Federation of Volunteerism and Community Service
Hi Achref
thanks for the offer. @zmorda is planning the workshop(s) in Tunisia, maybe have a chat with her?
Hi @gehan! I\'m sorry about the delay, this notification came in while I was still traveling last week. I would welcome Abeba for sure, even if we dont immediately see how a session would fit in the program at the moment. I think her contributions would be relevant to many sessions, and most useful in Day 3.
', u'post_id': 33943, u'date': u'2017-09-02 12:43:18'}, {u'user_id': 3, u'title': u'Hi @Sabouny, are you considering coming to Brussels?? ', u'comment_id': 35085, u'content': u'Hi @Sabouny, are you considering coming to Brussels?? That would be great.
\n\nWe are organising an Urban Game in the city about wellbeing, on the first day - you are welcome to give Matteo some ideas here about how a clowning activity could happen..
', u'post_id': 33943, u'date': u'2017-08-30 17:21:46'}, {u'user_id': 3857, u'title': u'Dear All,\n\nKindly note that my organization " Skills ', u'comment_id': 35081, u'content': u'Dear All,
\n\nKindly note that my organization " Skills to Succeed " expressed its willingness to host any workshop you need to organize in Tataouine , Tunisia .Our training room is fully equipped and we have an outstanding reputation regionally.
\n\nI look forward to seeing you !
\n\nWarm regards,
', u'post_id': 33943, u'date': u'2017-08-30 17:06:08'}, {u'user_id': 3815, u'title': u'Happy to clown around with everyone. We can ', u'comment_id': 35032, u'content': u'Happy to clown around with everyone. We can do a session of clowning and laughter
', u'post_id': 33943, u'date': u'2017-08-29 17:47:44'}, {u'user_id': 3613, u'title': u"I've chatted to Abeba and will write up ", u'comment_id': 34672, u'content': u'I\'ve chatted to Abeba and will write up an introduction. @woodbinehealth @noemi is there still space to include as an open session? It\'ll be along the lines of how our conceptions of personhood and dialogical thinking create or otherwise the conditions for care, drawing also on experience of people inhabiting communities that are open and networked due to their traditional philosophy.
', u'post_id': 33943, u'date': u'2017-08-24 15:09:16'}, {u'user_id': 3367, u'title': u'Hey thanks for the thoughts/ info! We ', u'comment_id': 34363, u'content': u'Hey thanks for the thoughts/ info! We have some sessions being proposed with female and/or female focused care (reproductive access), pending blog posts and more info now. Will post when available. The dream sessions sound great and @kate_g will post more info. Also some thoughts on having the first few minutes of the harvesting sessions being a grounding/physical experience, help break up the afternoon.
', u'post_id': 33943, u'date': u'2017-08-14 21:46:27'}, {u'user_id': 3613, u'title': u"I've emailed a few people to suss out ", u'comment_id': 34331, u'content': u'I\'ve emailed a few people to suss out potential sessions and most of them happen to be women which would help bring more gender balance. I guess if something comes together we include it as an open option.
Great @woodbinehealth have offered to do early morning physical care sessions. Bernard offered similar sessions - so perhaps a collaboration/splitting days? Also Kate has offered to host an early morning session harvesting dreams from the night before. It\'d be good to have a sense of whether we can find space for both to take place.
Just a few notes in response to the latest conversations spread on community calls and emails:
\n\nWe need to be careful about the gender balance <3
Early morning sessions for physical care would be great!
I propose all new sessions to be taken in as open options and agree with the proponents that we will try to accommodate them by mid September when we release the final program for the twitterstorm (for example there is an open slot on Day 2 from 5 to 6; or during an afternoon panel which is standalone now we can insert a workshop on the side). Please encourage people who would like to come to offer other kinds of contributions - assist a session from the current schedule with production, or share their insights on the page; or help onsite, organise icebreakers etc. It\'s details like this which will make a difference, in my experience.
Day 3 could see everything that has a practical relevance for OpenVillage moved here -with clear nudging to leaders that they adjust the contents to try to answer **How would you see your work developing further in a communal residency? ** (water sampling, permaculture, fitness clinic being some obvious examples)
I added a Dinner and PARTY on Day 3: a festival needs a proper celebration, right? This will be organised by Edgeryders through @Natalia most likely.
@Winnieponcelet: the documentary screening can be organised during an evening for a greater audience, so we can plan for Alberto\'s session then (Day 2 evening like you suggested)
@Woodbinehealth: I re-arranged Day 3 schedule because John\'s and Matt\'s are in themselves openvillage activities. and they need to follow each other.. works for now?
@noemi, looks like Day 2 in the pm will have the 3 sessions and the panel, which is about the same amount of time compared to the am. Let me know what you think.
\n\n@gehan, agree as above, just put the last title we had mentioned, but if you think it will change the focus, let me know.
', u'post_id': 33943, u'date': u'2017-08-05 19:32:46'}, {u'user_id': 3, u'title': u'Thanks!\n\nJust to say we are missing some things..- ', u'comment_id': 33958, u'content': u'Thanks!
\n\nJust to say we are missing some things..
- John\u2019s training session (Day 3) -> I had put the title and summary in a comment to you a few days ago.
-Digital security training (Day 3) -> same
- heads up: Day 2 has the whole afternoon to one panel (plus a gap time from 5 to 6?) and 6 sessions crowded in the morning.. we might need to make some space there.
@gehan I wanted to say that since you are curating the panel on collaboration you should have the last word on its title.. I\'m not sure as of now that the people we invite to open the conversation would have a say about autonomy - which is not the same as the spin on collaboration that we wanted to give it.. I liked the framing around chaos and collaboration more.
', u'post_id': 33943, u'date': u'2017-08-04 07:42:21'}, {u'user_id': 3992, u'title': u'Really inspiring work ', u'comment_id': 38299, u'content': u'Really inspiring work
', u'post_id': 826, u'date': u'2017-10-14 20:02:01'}, {u'user_id': 3904, u'title': u'@powermakesussick this is just wonderful! Thank you for ', u'comment_id': 38068, u'content': u'@powermakesussick this is just wonderful! Thank you for sharing, thank you for doing.
\n\nSo I\'m coming from an aligned perspective when it comes to care, in that I think that toxic power dynamics are central to the brokenness of intimate and systemic relationships of care. Some of the ways in which I\'ve been thinking through and practicing this refer to certain post-feminist, queer and decolonial approaches. I\'ve been thinking that if we can start with shifting our very psychoanalytic experience of the Self and Other, that if we begin relating through what I call an "expanded self" or what Bracha Ettinger calls the "matrixial borderspace," then we might be able to address the root of these issues. I have much more to say on this... will you be at the OpenVillage festival? Perhaps we can share more in person. In any case, you may like to look at the work of Bracha if you\'re not yet familiar with it - very high theory but beautiful in the ways it pushes beyond the patriarchal model of psychoanlaysis.
\n\nWhat I\'ve come to realise however is that my philosophical and practice-based explorations are limited in how they can address wider immediate care needs and will take a long time to unfold. This is what I appreciate about what you\'re doing! Is that you\'re translating these ideas into a tangible accountability model for health. I\'m not sure I understand it in its entirety, and yet another reason I hope we can talk more!
', u'post_id': 826, u'date': u'2017-10-11 09:15:34'}, {u'user_id': 3589, u'title': u"Hello Thom,\n\nThanks for your reply. I'm pretty sure ", u'comment_id': 37849, u'content': u"Hello Thom,
\n\nThanks for your reply. I'm pretty sure the logic of the name of our collective is meant to be self-explanatory, if not also agitating in nature.
\n\nYeah, you're right, we don't really need science to tell us that power makes us ill. Most of us are painfully aware of this.
\n\nWe're excited to hear more of what you're working on and share stuff too.
", u'post_id': 826, u'date': u'2017-10-08 08:59:20'}, {u'user_id': 3067, u'title': u'Can I ask the logic behind the name? ', u'comment_id': 37556, u'content': u"Can I ask the logic behind the name? Super interested, any thoughts appreciated.
\n\nI'm reminded of some of the neurological research around the effects of occupying a position of relative power in a system, think was done with police officers, citation needed.
\n\nI know neuro/bio research shouldn't be necessary to tell us power (whether for victims or perpetratorr) screws people up, but...yeah.
\n\nYour model sounds inspirational, hope to follow up.
", u'post_id': 826, u'date': u'2017-10-05 02:19:42'}, {u'user_id': 3704, u'title': u'3 more useful items to have during the ', u'comment_id': 38258, u'content': u'3 more useful items to have during the workshop would be a hot plate (to more quickly dry the smears), a light box for imaging, and some ethanol for slide cleaning. What is the space like? Will there be tables for people to work around (for instance, for the foldscopes) and benches for microfuge, slides and microscope(s)? Tell people to bring their DIY ones too (I have a simple lens you just stick on your phone somewhere...)!
have a nice weekend!
Thanks for all the work Rachel, appreciate it! I saw your notes. I think we're good with everything. We're taking the missing stuff from ReaGent next week. Our stuff is in a garage and the owner is not there often. We've been trying to get a hold of them, so haven't been able to confirm the materials 100%.
", u'post_id': 6429, u'date': u'2017-10-13 12:21:06'}, {u'user_id': 3704, u'title': u'Not sure if you got my last few ', u'comment_id': 38237, u'content': u'Not sure if you got my last few notes, Winnie...
The google sheet of needed things is updated.
Also, I did get some methylene blue powder in an eppendorf tube now, to bring with me, just in case you don\'t find any easily!
Can you please make an official invitation with letterhead and signature that requests me to come to this event, just in case I get any trouble at the airport??? (@noemi Maybe that is for you to do?)
Thanks again for all the organisation!
Looking forward!
Got some methylene blue powder in an eppendorf tube now, to bring with me, just in case you don\'t find any easily!
Can you please make an official invitation with letterhead and signature that requests me to come to this event, just in case I get any trouble at the airport??? (@noemi Maybe that is for you to do?)
Thanks again for all the organisation! Looking forward!
just updated the list in the drive (DIY science material, should be DIT!
the extra things I mentioned are now there, and I also added
gloves, glass waste container, scotch tape (for the Foldscope paper slides!)
ok, back again...
3:1 (v:v) methanol:acetic acid is even better for the fix, if we want...
also, forgot to mention, saline solution for washing the cells off the toothbrushes, and conical tubes to let clumps settle out, and then microcentrifuge tubes and a microcentrifuge to concentrate cells. (usually I use a little beaker with 10ml saline solution to wash cells off from the toothbrush, then I pour this solution into a 15ml conical tube to let the big clumps settle away, and pellet the cells from about 8ml of the upper volume, with one final wash, and that is when I count the cells with the hemocytometer. then smears are made and slides air dried (optional fix after this) then I put on methylene blue and coverslips to look at them... Many extra details may still come to me!
Hi! @niekd and @winnie
Thanks for making the petri plates for the water analyses!
If we have both LB and the Levine media plates, it will make for a more interesting analysis (the levine not only shows E.coli as metallic green, but prevents a bunch of gram+ from growing). Ideally, we will go off for the urban games with some clean tubes to collect samples, so we can use 3 independent tubes for each site. ( We usually just use conical tubes, but really we only plate 0.5ml per plate so that is overkill...) For negative control we can use tap water, and for positive controls I usually do a river water sample here, but maybe water from a WC is also ok (if people aren\'t too grossed out!
When we get back and can do the plating we will need, besides the bunsen burner, a pipetter and tips to deliver 0.5ml per plate, and I usually use a bent glass rod to spread the sample over the plate surface. Then the plates get incubated at 37degrees...
For the actual main part of the workshop I just cut some foldscopes (planning to bring 7, and tell everyone how to do their own...), but the main activity was supposed to be the cheek cell micronuclei assay. For that I need microscope slides and cover slips and methylene blue solution (0.5% is a standard) - if we want to fix cells on slides, methanol could come in handy... (but I don\'t want to get into adding iodine/acridine orange or other things like that in this workshop context). Again, pipetters and tips (p200, p20) could come in handy... For people that want to look at some of their own cells, we should tell them to bring toothbrushes!
If people want to look at moss life, also some extra plates, mineral water, and some droppers could be useful... Maybe this is a bit over-ambitious for 1.5h... more soon!
@rachel @niekd and I will prepare the petri plates that we will use for the analysis. What else should the teams have with them Rachel?
', u'post_id': 6429, u'date': u'2017-10-12 15:36:54'}, {u'user_id': 347, u'title': u'Yep, the sampling part is in! So we ', u'comment_id': 38125, u'content': u'Yep, the sampling part is in! So we have to remember to prepare the materials for the teams.
', u'post_id': 6429, u'date': u'2017-10-12 08:47:57'}, {u'user_id': 3757, u'title': u'well that my next step of connecting brasilian ', u'comment_id': 37043, u'content': u'well that my next step of connecting brasilian concept (GAMBIARA) and the concept of gamBIOlogy wich i find super acute to what I want to see into \'\'biohacking\'\' (closer to \'\'Gaia hypothesis\'\' and lovelock idea of an ecosystem because brazilaian are connected to the amazon forest they feel an urgent need to protect what can be protected..not all brazilians but more than anywhere else i have been in the world...also Taoiste in japan i felt had this feeling of non duality...\'\'we are one\'\' kind of feeling) I m tired of visiting the richest/bigger/first labs ever builded with loads of unused equipment, collected from big biotech and medical centers...we almost forget about basic science, also nowadays its focus to much into synthbio (wich i find fascinating crispr etc..) but its almost only about high level research and search for the next innovative disuptive technology that gonna make money (that sart up incubating bullshit)...There is so much stuff we can do without scaring everyone out without dna modification etc...(wich i admit scares me more and more when I see people studying tardigrade and think they can augment themselves with that specific protein of the tardigrade (tran-human) that would repair their DNA when touched by radiation and thus travel longer into space exploration...brrrr...Elon Musk stuff 
i love science fiction but sometimes its also good to know your basic mythologies and lesson learned from the past and all that prom\xe9theus feelings...mythology IS science...just different approach
sorry i m too long into my responses, i no good at being short 
oohh! Well, Luc Henry is still involved (acting secretary for the association now), though very busy with his work with the new president of the epfl (who also seems very interesting). Can\'t wait to hear more history and also about Gambiology...
Woa so the stick in the water works...yeah !! ok cool i m getting into that thing pretty soon thank you.
ok first of all i didnt know you were from swiss at hackarium, i know the founders pretty well and all the struggles they had bringing people in...also it was a paillasse inspiration place so I was a bit worry about bullshit story telling (I used to be their worldwide ambassador)...part of that story telling game...Paillasse is going in a new direction and i m glad hackarium is making interesting stuff as well. wondering what Luc and Henry are doing now...proly coworking stuff and biotech ?...anyway i m glad i m gonna meet you in october...
.
on an other side i wish not to call myself a biohacker anymore but a GAMBIOLOGIST i could talk about it for hours...but I think getting rid of that american ways of doing \'\'biohacking\'\' and all that human enhancement (grinders, synthbio dna modification to gain superpowers) also their relations to fbi and big corporations throught \'\'cool\'\' communication and \'\'INDIEbio\'\' incubators philosophy (and patterns) was not in my scope when i entered that niche of \'\'open bio\'\'
Instead i m more interested in participatory mindset and workshoplogy practices, hackteria in mind... so yeah water is in my scope, I know few people working on similar fields especialy in Japan when analysing radiations from drinkable water samples...or for irrigation & rice...
We've decided not to do the demo. Apart from the legal hurdles, there's also the logistics and timing that make it hard to have a meaningful experience. Instead Alberto will show us his work and open a discussion on communication.
", u'post_id': 6429, u'date': u'2017-09-25 22:29:15'}, {u'user_id': 3704, u'title': u"if we don't have real hooks, it is ", u'comment_id': 36953, u'content': u"if we don't have real hooks, it is hard to see how they can call it really fishing...
in the rule page, I guess we would fit under article 10?? should we see if our date(s) are free first, on their calendar, before trying to put in an application? Maybe Hackuarium could be the non-profit requesting approval?
my cousin uses a sort of block charcoal water purifier, http://nymag.com/strategist/2017/03/best-charcoal-water-filter-kishu-review.html but I don\'t expect the one pictured here to affect microbial water quality, which is what I mainly thought we could test - more physico-chem things (chlorine, and maybe some metals, but maybe not heavy metals - they say the brita charcoal filters don\'t help for lead or iron, for instance)... Maybe we could test for nitrates etc (we have some fish-tank kits reagents at Hackuarium) and pH?? (they talk about going alkaline in that Kishu review)
Actually, the head of the fundamental microbio dept here (at UNIL, Jan van der Meer) thinks using things like Brita filters is less good than just drinking ordinary tap water also because they could potentially provide a carbon source for bacterial growth!! (after all my years using them, I was not happy to hear this...)
Okay! @matteo_uguzzoni does this fit in the urban game? Participants just need to have access to water, which they do in Parc Leopold
', u'post_id': 6429, u'date': u'2017-09-19 02:52:31'}, {u'user_id': 3362, u'title': u"Cool! Re-mineralizing? Haven't heard about it. If you ", u'comment_id': 36567, u'content': u'Cool! Re-mineralizing? Haven\'t heard about it. If you can get your hands on some, we can do some tests
I realy love the idea...sounds like a public laboratory adventure....what I m curious about is (and is it of any interests) how do you remineralize water with charcoal? Finger sticks that cleans water overnight....Sudo science? or real impact for healthy human drinking (especialy when using water from tap in morocco) perhaps doing an experiment before <> after...see if there is real change in terms of quality...and if it\'s realy cleans water that we drink...that\'s citizen science related no? ... @winnieponcelet 
just in case, here is a sheet like my old students used for calculating the \'biotic index\' (indicating river health)...
', u'post_id': 6429, u'date': u'2017-09-15 12:21:12'}, {u'user_id': 3704, u'title': u'put in a few things on the list... ', u'comment_id': 36337, u'content': u'put in a few things on the list...
', u'post_id': 6429, u'date': u'2017-09-15 12:18:24'}, {u'user_id': 3362, u'title': u"I'm not fully up-to-date with what we have ", u'comment_id': 36149, u'content': u'I\'m not fully up-to-date with what we have in the lab. @niekd is helping out with the experiments at the festival and better with this stuff. Can you pitch in?
\n\nLet\'s make a list with stuff we need and then work towards gathering everything. I\'ve made a spreadsheet here, please add everything you can think of: https://docs.google.com/spreadsheets/d/1bJF0GLmmx7s9SofkXFJ-MvSmD0eFPsWWUVDXIxZl8wQ/edit?usp=sharing
\n\nWe should get a good overview by the end of next week, so we can order what\'s missing or reach out to people to bring/support us with stuff.
', u'post_id': 6429, u'date': u'2017-09-13 17:58:53'}, {u'user_id': 3704, u'title': u'any chance of Levine or other selective media, ', u'comment_id': 35998, u'content': u'any chance of Levine or other selective media, in addition to ordinary LB, if microbial counts are done?
\n\nduring the urban game, \u2019sterile\u2019 conical tubes would be useful, to be labelled wherever we take a few samples, for use in analyses (plating, nitrates, etc - plankton, amoeba, algae)?
thx!
best,
Rachel
p.s.
if you know anyone with biosensor bacteria for volatile pollutants, you have to make sure to leave no air bubble, btw !
please don\u2019t also forget the big micronuclei hunt(s)! on our cheek cells (tooth brushes to be provided, with AGiR! mini logo would be cool, huh??)!!
\n\nciao for now, RA
', u'post_id': 6429, u'date': u'2017-09-11 19:32:27'}, {u'user_id': 3362, u'title': u'We can and got all of the stuff ', u'comment_id': 35994, u'content': u'We can and got all of the stuff ready to use from our lab here! For biotic index and sampling we don\'t need permission and the water is accessible in parc Leopold. Sampling can be part of the urban game, right @matteo_uguzzoni ? And then we can do more in depth analysis in your session @rachel
\n\nFor the fishing itself I haven\'t had the time to contact the autorities.
', u'post_id': 6429, u'date': u'2017-09-11 18:28:37'}, {u'user_id': 3704, u'title': u'for the biotic index, some easy access shoreline ', u'comment_id': 35896, u'content': u'for the biotic index, some easy access shoreline is useful... (my students did it on a shallow river)
', u'post_id': 6429, u'date': u'2017-09-10 09:06:48'}, {u'user_id': 3704, u'title': u'are we still thinking about doing some water ', u'comment_id': 35895, u'content': u'are we still thinking about doing some water sampling?
for microbes/protists/biotic index calcs??
if we want to do microbes, we need plates and incubators etc organised in advance. A DIYbunsen burner is very easy with alcohol, a jam jar and a paper wick!
Mmm I have a hunch. We've experiemented with some things in edgeryders. If they are turned into shared routines I think we can get around some of the issues
", u'post_id': 6429, u'date': u'2017-09-02 11:13:33'}, {u'user_id': 3769, u'title': u'nice ', u'comment_id': 35259, u'content': u'nice
', u'post_id': 6429, u'date': u'2017-09-02 04:26:45'}, {u'user_id': 2915, u'title': u"This isn't exactly parallel, since it comes from ", u'comment_id': 35253, u'content': u"This isn't exactly parallel, since it comes from business, but I was given some very sage advice by the man who ran the Chronicle Publishing Company, owner of SF Gate, to whom I had to pitch my budget, secure funding, and who helped me along the way.
\n\nFirst in budgeting e told me that when I made my revenue projections, it was better to predict a lower number even if it showed less or even no profit - if that was my real number. because whatever I declared was what he was going to hold me to. He would not tolerate over-promising and then under-delivering.
\n\nThe second thing was when you have good news and bad news, always lead with your bad news because then your good news will be believed. It won't necessarily if you lead with good news. And as you might expect, many do lead with their good news..
", u'post_id': 6429, u'date': u'2017-09-02 01:57:11'}, {u'user_id': 2915, u'title': u'It helps I think when the person responsible ', u'comment_id': 35238, u'content': u"It helps I think when the person responsible for the message, outreach and fundraising also either manages the on-the-ground work of the mission itself, or knows enough to do it, but works closely with someone to whom it is delegated. Funders usually want to see a main person who hands-on manages the work and is also the main champion of the idea. But if it is more than one person they have to be very tight in their day-to-day understanding of what is going on. When the message gets separated from the work, credibility drops.
Maybe that project had this disconnect. But I bet it made good copy in the annual reports of the big orgs that funded it.
It helps to lay out a vision of where you want to go and where you think you can go, then describe what you need to accomplish it. It might be interesting to have seen the grant proposals for that tree project to see what was promised.
\n\nAnd posing with Macron..hard to say if that helped or hurt fundraising and overall awareness. I know he made some boneheaded comment awhile back about how good to them France was as a colonial power, which didn't make him look too sharp. But usually those photo-ops gain you more than they lose.
", u'post_id': 6429, u'date': u'2017-09-01 22:41:45'}, {u'user_id': 3362, u'title': u'Communication (how to reach an audience as eg. ', u'comment_id': 35234, u'content': u'Communication (how to reach an audience as eg. an artist) and storytelling are becoming an intriguing topic of conversation. See also this post on Risks of a too beautiful story-telling that sparked a lot of reactions. @iamkat also mentioned it: how do you disseminate the outputs of your project?
\n\nOn the one hand, it takes a lot of effort to get your stuff out there. We can testify to that with our lab: it takes a lot of work, especially when what you do is relatively obscure. Then getting people to actually care is harder still. On the other hand, painting a rosy picture, using buzzwords and rubbing shoulders with those who have the means to take your project to the next level can also be toxic. Which factors make it harder or easier? Which kinds of obstacles do we encounter? How should we make these highly consequential, but often cloudy judgment calls? How is it all connected to business models and funding?
\n\nI am personally extremely interested in a session around this topic. Since you mention it in this session proposal, I think it would be a great topic for the discussion part of the session @albertorey @noemi @gehan @woodbinehealth. We can open it up for others with similar or completely different experiences on communication and going out there to \'sell\' your ideas to your relevant audience.
\n\nPinging those involved in the discussion so far for their thoughts @nadia @baderdean @alberto @dailylaurel @johncoate @HadeerGhareeb @Yosser @MurielAboulrouss
', u'post_id': 6429, u'date': u'2017-09-01 20:41:01'}, {u'user_id': 3362, u'title': u"So I've checked the legal aspect. There's of ", u'comment_id': 35231, u'content': u'So I\'ve checked the legal aspect. There\'s of course a rulebook for the use of public parks: https://www.brussel.be/sites/default/files/bxl/REGLEMENT%201%20dec%202014%20DEF2.pdf (Both in French and Dutch).
\n\nTLDR:
* Fishing is strictly forbidden, so we\'ll need to argue that we are doing a demo and not actual fishing. Which might not \'fly\'
* We need to file an application and probably pay a fee. We can avoid the fee if we do it as a nonprofit, which I\'m not sure we can do with our Flemish nonprofit. Then it needs to get approved still.
* We need to pay a deposit, which is minimum \u20ac150 (cash 5 days up front at their treasury).
* We cannot put structures or whatever \'heavier\' equipment there, as this makes the application more expensive.
... if we want to go that way. @matteo_uguzzoni @albertorey what do you think?
', u'post_id': 6429, u'date': u'2017-09-01 19:57:36'}, {u'user_id': 3362, u'title': u'I still need to check if we are ', u'comment_id': 35092, u'content': u'I still need to check if we are actually allowed to do it
This sounds awesome guys, happy the flyfishing is part of the urban game!
\n\nLet me or @natalia_skoczylas if more inquiries need to be made.. But our availability onsite in Brussels will be full time only starting end of September.
', u'post_id': 6429, u'date': u'2017-08-30 16:45:24'}, {u'user_id': 347, u'title': u'Winnie, thanks! I think that the Leopold park ', u'comment_id': 34651, u'content': u'Winnie, thanks! I think that the Leopold park could work, I will probably put it in the middle of the game, so there is plenty of time to go and come back to the location.
Now I will come up with a suggestion about how to integrate that in the game, then we can decide if it works or not @albertorey, hi, we are thinking about integrating a small demo in the game that will kick off the conference. You can read the first thoughts we had here
I scouted the neighbourhood of the Festival venue for suitable bodies of water this weekend.
\n\nThere\'s two lakes nearby Plage Flagey (Etang d\'Ixelles), which are not so suitable since you cannot reach the water. You can do it easily in theory, and the place is actually quite nice, but you\'re not allowed it seems like. They are supposedly really close to the venue though. Photos below
\n\nAnother option is the lake in Bois de la Cambre, which is a 30+ min walk from Place Flagey. Could be shorter depending on the exact address of the venue (@noemi ?). You can reach the water easily. Not sure if it\'s allowed, but we should ask if a demo is allowed (not the actual fishing). The distance is a problem: a one hour round trip doesn\'t fit the schedule. Public transport takes as long. Perhaps a few rental cars? Photo below (click on map to see full).
\n\nThe last option I didnt\'t have the chance to visit, but on Google Maps it also looks suitable: Parc Leopold. Closer to Place Flagey (20 min walking) and the water is accessible. Same remarks as Bois de la Cambre. Photo below
\n\nIn any case we\'ll need to figure out if fishing is allowed or if a fishing demo is allowed. Thoughts? @albertorey @rachel @matteo_uguzzoni
', u'post_id': 6429, u'date': u'2017-08-23 15:37:29'}, {u'user_id': 3422, u'title': u'Thanks for your hard work!\n\nI think it would ', u'comment_id': 33538, u'content': u'Thanks for your hard work!
\n\nI think it would be a good idea to contact the groups that were suggested and see if we can borrow some rods and reels and if the groups would be willing to help us with the casting demo and fishing in the ponds.
\n\nIf there are ponds that are available for fishing, that would be great for the adults and kids! If there is a cost associated with using the pond, we could provide free advertising for them at the festival as well as mention that we are providing opportunities for individuals who might become members of the club that runs the ponds. They could also see it as a donation to a charity.
\n\nThere seems to be an opportunity here to investigate why fish can not survive in rivers in Brussel and does this create health issues to the residents if the city. What is the history of the pollution and why does it persist? This is common around the world. We can also do some testing to compare the water quality between the pond and the rivers. I believe the festival is near the la Senne river. It might be appropriate to investigate and compare it to the pond.
', u'post_id': 6429, u'date': u'2017-07-24 16:06:00'}, {u'user_id': 3704, u'title': u'equipment', u'comment_id': 33452, u'content': u'one more thought: real gear would be nice, of course, but also string and sticks can be used to teach some basics for casting, imho...
\n\n
@WinniePoncelet @albertorey\xa0
\n\nIt is too bad there are no good Belgian rivers running through Brussels with good banks for fly-fishing. \xa0However, doing casting and citizen science on an artificial pond would still be fun... \xa0Practicing casting especially for dry flies is very important, if you want a big trout to jump up for them! \xa0\xa0We almost always did \'catch and release\' fishing\xa0- which can be stressful, esp if the fish swallows the hook too far - back in the day, anyway.\xa0 Also, I would say seeing the microbial state of an artificial pond might be of great interest in terms of citizen science, esp if kids are wading in it. \xa0 \xa0We have Levine Media which can distinguish E. coli by their metallic green sheen, and prevents many gram+ bugs from growing, if I should bring some - poured plates already?? \xa0
bye for now!
\n\nRachel
', u'post_id': 6429, u'date': u'2017-07-19 12:14:24'}, {u'user_id': 3362, u'title': u'Visiting an expert in Brussels', u'comment_id': 33400, u'content': u'@albertorey and @Rachel I went to a fly fishing store in Brussels to ask for advice and assistance for the session. The guy was friendly and generous with advice, though he cannot help with equipment (he can\'t resell used equipment and it\'s fragile).
\n\nHe said there are no suitable rivers in Brussels for fly fishing. October is also a harder period, as the season ends in september. The suitable places are 60-100km away (one in Flanders and a few in the Ardennes), and then still it would mostly be a club or an artificial pond because of the time of the year.
\n\nHe gave me contacts at Mouche\'T (fly fishing club in Brussels), Casting Club of Flanders VZW (fly fishing club in Ghent) and Fario Fly Fishing Club (fly fishing club in Diksmuide, West-Flanders). They would probably be a better shot at finding experts who are willing to help and also lend out their equipment.
\n\nIn conclusion,\xa0actual fly fishing will be hard:\xa0it\'s uncertain if it goes at all\xa0and will involve bus travels etc. That would break the rhythm of the festival as well. What we can do is do a demo in another body of water which includes\xa0everything but the actual catching, but do tell me if that does not make any sense as I\'m no expert. An artificial pond seems silly considering we also want to do some citizen science experiments.
\n\nCurious to see what you think!
', u'post_id': 6429, u'date': u'2017-07-19 11:45:21'}, {u'user_id': 3422, u'title': u'More info', u'comment_id': 21410, u'content': u'thanks,
\nAlberto
\n\nI will look through my files\xa0tomorrow for image and will edit text.
', u'post_id': 6429, u'date': u'2017-06-29 22:30:17'}, {u'user_id': 3, u'title': u'Citizen science experiments.', u'comment_id': 8127, u'content': u'@albertorey I\'m glad it\'s coming along nicely! Count me in to help with the online presence and tweeting before and live, during the session.
\n\nTo get a good promo I think you need a large/hi res picture illustrative of the topic.
\n\nCan you Edit your text to add a few\xa0sentences with instructions for potential leaders\xa0of experiments? Where to send their information, how to stay in touch? etc. Ideally by leaving a comment on this session page.\xa0
', u'post_id': 6429, u'date': u'2017-06-22 06:14:39'}, {u'user_id': 3904, u'title': u"@noemi I'm glad it interests you! \n\nSo from ", u'comment_id': 38242, u'content': u'@noemi I\'m glad it interests you!
\n\nSo from what I can tell, I think because of its subject matter and networks, the conference is designed to be accessible to all kinds of practitioners. In the call for papers they were looking to bring together "scholars, researchers, theoreticians, cultural operators, artists, practitioners, activists, policymakers and decision-makers from across the world and broad range of disciplines"
\n\nYou can read more on the call here, and the programme here can also give you an idea of the style and nature of how the ideas will be explored.
\n\nTo me I think it is trying to bridge hands-on learning with scholarship so would be worthwhile thinking about it but yes, I\'m really not sure. Would be very happy to share my notes if of interest!
', u'post_id': 33746, u'date': u'2017-10-13 13:21:39'}, {u'user_id': 3, u'title': u"@anique.vered I'm interested in that conference in Rijeka ", u'comment_id': 38155, u'content': u'@anique.vered I\'m interested in that conference in Rijeka - do you think it would be worthwhile for hands on learning or is it too academic? I cant tell..
', u'post_id': 33746, u'date': u'2017-10-12 13:30:09'}, {u'user_id': 3904, u'title': u'Thanks @living_streets for sharing this, and in particular ', u'comment_id': 38069, u'content': u'Thanks @living_streets for sharing this, and in particular for stewarding a project that straddles social and governmental systems!
\n\nHaving been involved in aligned movements but more so in North America and Australia, there\'s a lot that comes to mind on reading this post. So the first thing is to check if you\'re aware of "tactical urbanism" and its approaches, as to my understanding this is one of the earliest iterations of community-led placemaking and has plenty of useful tools that could allow you to expand involvement in this project to broader collaborators if you wanted that..?
\n\nAs I\'m sure you\'re aware, there\'s an abundance of this kind of placemaking happening across the US and Canada and if you\'re not already across organizations like the Project for Public Spaces, it\'s an absolute must. The Cities for People initiative in Canada is also super interesting. (My apologies if I\'m sharing the obvious... I have plenty more references if you want them just hit me up).
\n\nRecently, I\'ve been involved in some community consulting as a part of a new project that\'s bringing together diverse collaborators in Montreal\'s community development. It\'s called the Listening Platform and is trying to address the way in which we listen and weave together to the abundance of voices involved in a cities evolution. I think it could be an interesting reference as Living Streets grows. One reason in particular is I\'m also left wondering how you are engaging the breadth of the communities in Ghent in this project - is it including socially-excluded communities or is it more a creative placemaking project? Over the years I\'ve collaborated with an amazing organization called the Design Studio for Social Intervention (incubated out of MIT\'s urban engagement lab) and I continue to be inspired by how they use placemaking approaches to include and empower marginalized voices. Their Creativity Labs could be interesting for you too.
\n\nAnyway, that\'s a lot I know (and I haven\'t even touched on my masters yet! 
) . In short, great to see how you\'ve expanded out of government, and curious as to how you\'re continuing to move beyond traditional approaches to this kind of important and generative work.
PS. You may be interested in the Participatory Governance in Culture conference coming up next month in Croatia (I\'ll be presenting), if you\'re not already familiar with it 
Hi living_streets, thanks for sharing.
\n\nA few comments, observations, questions:
\n\nYou speak about lively, colorful streets. Most cities are lively, and colorful by definition. Think of people from all around the world, graffiti, street art, and much more. It is mostly the poor neighborhoods that are "lively and colorful". What I can\'t find in your description is the issue of social justice, of human dignity, of autonomy. Getting to know one\'s neighbors is nice, but it is not about what we do in our free time, it is about how we work together to live a life in dignity.
\n\nPersonally, I wonder how a middle class project like this might undermine the trust of the wider (poorer) community in the ability of actually working together across class (\'race\', gender, sexuality, etc.).
', u'post_id': 33746, u'date': u'2017-10-09 10:09:28'}, {u'user_id': 3, u'title': u'Connection with FutureMakers', u'comment_id': 33786, u'content': u'I could see early on how Pieter and Dries\'s experience connects with what UNDP are trying to do in FutureMakers - approaching cities and public spaces as experiments where communities could bring their contribution at the decision making table. Not as a "stakeholder", but as a dynamic conversation partner.
\n\nIt falls on me to follow up with a proposal for collaboration to our friends in Ghent and the\xa0UNDP teams - definitely kickstarted by\xa0sharing this kind of\xa0knowledge. Proposal incoming later this week!
', u'post_id': 33746, u'date': u'2017-03-21 14:19:29'}, {u'user_id': 4, u'title': u'I get it', u'comment_id': 33784, u'content': u'Thanks @Living_Streets aka Pieter and Dries. I think I get it now. I also understand the reference to parking: of course cars are a very un-social technology, but since they are so pervasive you need to find a way to get rid of them before you can even start playing around with streets as public spaces.\xa0
\n\nI really liked the DRIFT Transition Management Handbook. The approach resonates deeply with our own:
\n\nTransition management does not seek to involve stakeholders or to represent a given population; it focuses on selecting change agents. However, any concept of selective involvement comes with tensions. For example, doubts can surface regarding democratic legitimacy. Making clear that transition management is not a decision-making process can assuage these: it creates a setting for mutual inspiration among societal actors, in which new ideas, connections, and actions can emerge.\xa0
\n\nWe also like to approach change as something that is not decision making. I in particular use a lot of biology-derived metaphors, like evolution or adaptation \u2013 we discussed this at length with your fellow Ghentian @WinniePoncelet . It\'s a very fresh way of looking at social processes. But 99% of people I talked to find it counterintuitive, even disturbing. So, congrats on bold thinking!\xa0
\n\nI am sure @Noemi and our colleagues over at the Future Makers prototype will love it too. Ping @mariam1313 | @Tinatin | @Max_Perry | @gazbia-sorour . Maybe we could collaborate a bit?
', u'post_id': 33746, u'date': u'2017-03-20 19:07:03'}, {u'user_id': 3564, u'title': u'Good morning @Alberto , ', u'comment_id': 33778, u'content': u'Good evening @Alberto ,
\n\nWe started indeed with a small group of people. The city of Ghent used the theory of transition management to create a strong group (\u201carena\u201d) to start reflecting on the future. We explained this in this article: http://www.polisnetwork.eu/uploads/Modules/PublicDocuments/thinking-cities-launch-issue-web2.pdf \xa0(page 24)
\n\nThe city of Ghent (thanks to the European MUSIC-project) co\xf6rdinated the first year of thinking, dreaming and creating a strong group (see also https://drift.eur.nl/wp-content/uploads/2016/11/DRIFT-Transition_management_in_the_urban_context-guidance_manual.pdf) . Then the group organised themselves, with sponsorship money and a lot of volunteer time of the pioneers of the first hour.
\n\nThe Living street experiment evolved from 2 streets during 1 month in 2013 to more than 30 streets during sometimes 2,5 months the last years. Each edition the evaluation is done through collaboration between the residents in the street,
\n\n\u201cFrom streetparking to neighborhood parking\u201d: if we want to create free spaces in streets we have to find solutions for the parked cars in the street. When experimenting with Living street the initiators have to find appropriate places for their cars to park. Not just \'around the corner\'. We look for under-used parking spaces at shops, companies, railwaystations, ... This can be in the neighborhood or even more remote at \'long distance parkings\'. Each time citizens (on a volunteering basis) test this new way of parking and are supported by our network through (e)-bikes, bus/tramtickets, ... The insights and experience we gain here are used by the local city administration.
\n\nSocial streets: We heard about social streets not long ago via Giulia Ganugi. She\'s a PhD student Sociology in Bologna. Her research is about the Social Street phenomenon, born in Bologna three years ago and spreaded throughout Italy and the world. She visited us in Ghent to know more about the Living Street-experiment.
\n\nWe also like to add the link to our newspaper:\xa0https://www.yumpu.com/en/document/view/55700321/livingstreetsnews1 \xa0
\n\nKind regards,
\n\nPieter and Dries from Ghent
\n\n@Rossana Torri \xa0and @Erika Lazzarino
', u'post_id': 33746, u'date': u'2017-03-19 20:52:36'}, {u'user_id': 4, u'title': u'What a story!', u'comment_id': 33762, u'content': u'Welcome, @Living_Streets ! This is\xa0very inspiring.
\n\nOne part of the story I don\'t understand is: where does the transformative muscle come from? The arena you describe was made of 20 people. That\'s not a large number, certainly not large enough, in and of itself, to secure legitimacy. And yet, you guys were able to wield real influence, with the city giving you permission to try things out. How did this happen? Did you have a "bureaucrat hacker" in the administration championing you?\xa0
\n\nI suppose you needed some financial support to get the Living Street experiment going. Evaluation is a particularly hard task to get people to do as voluntary work. Where did that come from?
\n\nWere you aware of the Social Street experiences in Italy?\xa0
\n\nAnd finally, there is a sentence in the post I don\'t understand:\xa0
\n\n1) How can we evolve from street park to neighborhood parking?
\n\nWhat is "neighborhood parking"? Can you please explain?
\n\nAlso ping @Rossana_Torri and @Erika_Lazzarino , who might be interested in this story.
', u'post_id': 33746, u'date': u'2017-03-03 16:53:00'}, {u'user_id': 4092, u'title': u'Dear All, \n\nI am looking forward to being ', u'comment_id': 38145, u'content': u'Dear All,
\n\nI am looking forward to being a part of this conversation and getting to know the community. My contribution would be through an African lense since that is much of my experience.
\n\nEric here
', u'post_id': 6460, u'date': u'2017-10-12 12:06:53'}, {u'user_id': 3, u'title': u"She's in!! I asked yesterday too :)) ", u'comment_id': 37183, u'content': u"She's in!! I asked yesterday too :))
", u'post_id': 6460, u'date': u'2017-09-29 11:01:35'}, {u'user_id': 3362, u'title': u"@nadia we thought you'd be a good fit ", u'comment_id': 37179, u'content': u'@nadia we thought you\'d be a good fit as a moderator from your experience with Open&Change and Edgeryders. I thought I had asked before, but couldn\'t find the communication anywhere, so probably not.
\n\nAre you up for being moderator?
', u'post_id': 6460, u'date': u'2017-09-29 10:17:23'}, {u'user_id': 3400, u'title': u"Hello @noemi . Ok, let's do so. ", u'comment_id': 36978, u'content': u'Hello @noemi . Ok, let\'s do so.
Hey, have you seen the latest version of the program?
There afternoon sessions under the headers of Freestyle, where all the session ideas not officially in can be hosted - we\'ll do a shoutout during the day so people can announce themselves, and allocate rooms on the spot. Works?
@gehan @noemi
Hi, we are open to organize the game when it fit best. We could take a name such as "Money and Social Innovation". I think the usual time for the game is about two hours. I think it is better with a group bigger than six people up to all villagers. For logistics, a space where the participants can move easily, that is with no tables or chairs in the middle. Out of that, a whiteboard, a table, and possibly a beamer. Best,
Thanks Do we have some info for a short bio, or can you ask that as well?
I'll email her tomorrow and ask for it, sorry for the delay!
", u'post_id': 6460, u'date': u'2017-09-01 20:33:45'}, {u'user_id': 3362, u'title': u'Updated with what I had. Asked Chris for ', u'comment_id': 35097, u'content': u'Updated with what I had. Asked Chris for a hi-res picture.
\n\nHas anyone received a picture from Paola?
', u'post_id': 6460, u'date': u'2017-08-30 19:17:51'}, {u'user_id': 3, u'title': u'Hey, I just saw this session tweeted. Wondering ', u'comment_id': 34906, u'content': u'Hey, I just saw this session tweeted. Wondering if we can update the page with the confirmed panelists and moderator? Thanks @winnieponcelet if you have the time. See @gehan\'s update of the collaboration panel page.
\n\nThe next step would be to promote sessions and encourage participants to drop in the questions from their own work.
\n\n', u'post_id': 6460, u'date': u'2017-08-28 13:47:08'}, {u'user_id': 3, u'title': u'I agree with Gehan, the game can stand ', u'comment_id': 34086, u'content': u'I agree with Gehan, the game can stand alone in the afternoon of that same panel. Back when we talked to Fabio and Bernard in the team the panel idea was early days and we thought the game can piggyback on it. From my notes, it seemed that the game aims to make us think about systems where everybody creates their own set of monetary units and the right to fund the projects they want. What it will reflect on is if and how "social credit would be the better way to finance open projects that we do."
\n\nAlso @breathinggames we need the name + duration + ideal name of participants and any other logistics required in order to include it in the program. Thanks!
', u'post_id': 6460, u'date': u'2017-08-07 16:48:47'}, {u'user_id': 3613, u'title': u'Hey! I really like this. What I understand ', u'comment_id': 34082, u'content': u"Hey! I really like this. What I understand about the panel will be structured - I'm wondering if this would sit better somewhere in the 3 days where we can get good interaction from those who are interested? How long does a game take?
", u'post_id': 6460, u'date': u'2017-08-07 15:50:02'}, {u'user_id': 3400, u'title': u"Economics frame the way we interact socially. Today's ", u'comment_id': 34072, u'content': u'Economics frame the way we interact socially. Today\'s funding generally foster competition instead of collaboration. This creates high collective costs instead of mobilizing everyone\'s efforts to meet collective challenges.
\n\nWe propose a game that enables players to experiment different socio-economic dynamics.
\n\nWe will bridge it with our work, introducing the value accounting system we use, and the cryptocurrencies system we have been developing.
', u'post_id': 6460, u'date': u'2017-08-07 13:48:46'}, {u'user_id': 3, u'title': u'Heads up: I spoke to Paola Villareal yesterday ', u'comment_id': 33687, u'content': u'Heads up: I spoke to Paola Villareal yesterday who agreed to be part of this panel! She is a programmer and data scientist advocating for social causes, and recently with Creative Commons as a Director of Product Engineering.
\n\nShe will contribute from her journey of getting her work funded in a more or less sustainable way: through fellowships in different programs over the past years. @lucy and @damiano I think you will enjoy meeting her.
\n\nLooking forward to making this session official, getting there and thanks for the patience
@Yannick could you see this contribution in a panel or simply to help us move forward with how we design it?
\n\nI remember Ouishare at some point had a system of internal credits, is this the logic? I couldnt find a writeup on your github rep unfortunately..
\n\n@breathinggames are thinking along similar terms, advocating for social mutual credit as a way to finance the work in open projects. Maybe Bernard can explain more.
', u'post_id': 6460, u'date': u'2017-07-13 14:41:29'}, {u'user_id': 3293, u'title': u'Gamification at OpenFab', u'comment_id': 14704, u'content': u'I\'m working now on the development of gamification elements at OpenFab, a fablab in ixelles. Where we are looking at how we can create a system that mixes money and inside credits. Moneytarisation of each brought resource and every possible issue becomes a mission that can be beaten while receiving credits. These credits can then be use for other resources. The idea is to have it ready for september, and we are using github as the managing tool: https://github.com/openfab-lab/openfab
', u'post_id': 6460, u'date': u'2017-07-10 08:21:47'}, {u'user_id': 3362, u'title': u'DIY Science Network participating', u'comment_id': 6671, u'content': u'DIY Science Network want\xa0to participate in the panel to present the perspective of bottom-up research initiatives. They\'re exploring both the short term (how to get funded now) and the long term (how to change funding policy culture).\xa0Ping @Lucy\xa0
', u'post_id': 6460, u'date': u'2017-07-05 08:54:00'}, {u'user_id': 347, u'title': u'Yes, yes yes!! Noemi is there a way ', u'comment_id': 38128, u'content': u'Yes, yes yes!! Noemi is there a way to have "private" conversation with multiple member of the community here in EG or is better if I ask to the Urban game team to talk in Drive? Thanks!
', u'post_id': 33985, u'date': u'2017-10-12 09:05:24'}, {u'user_id': 347, u'title': u'Hi Kate, thank you very much for your ', u'comment_id': 38127, u'content': u'Hi Kate, thank you very much for your suggestion, I think that we could definitely add the seed bombs task in the game or we can ask people to collect seeds and then you can do a lab about seed bombing during the Festival (didn\'t have a look at the final program yet so I don\'t know if it fits),
otherwise I think that we can create a number of messaged and bombs (multiple of 3) and then simply add it to the tasks that the teams must do. Sorry again for my late reply, i really hope that we can add it
Earth to @matteo_uguzzoni .. all good on your side?
', u'post_id': 33985, u'date': u'2017-10-09 09:56:55'}, {u'user_id': 3362, u'title': u"I'm also interested in how the ideas found ", u'comment_id': 37407, u'content': u'I\'m also interested in how the ideas found their way into the game and if you need anything from us in preparation for the event @matteo_uguzzoni
', u'post_id': 33985, u'date': u'2017-10-03 15:03:39'}, {u'user_id': 3, u'title': u'@matteo_uguzzoni did you get the chance to read ', u'comment_id': 37375, u'content': u'@matteo_uguzzoni did you get the chance to read all of the inputs above? Whoa, that\'s great stuff!!
\n\nI added some stuff in the google doc Brief - some POI for you in the neighborhood. Let us know what else is needed and if all is going well ?
Yeah, a rare call looking to fund exactly this kind of initiative. Happy to join a call on urban game plans towards some prepping b4 October - seed printing etc. @winnieponcelet @matteo_uguzzoni Just ping me when time opens up.
', u'post_id': 33985, u'date': u'2017-09-04 13:10:20'}, {u'user_id': 3362, u'title': u'Nice! Maybe what we do during the Urban ', u'comment_id': 35350, u'content': u'Nice! Maybe what we do during the Urban Game can serve as inspiration and prototype for something in this call?
Back online & excited to print up some seed bombs
& FYI - there\'s a GREAT relevant open call in Brussels (deadline end of October) that could be a place to develop creative instigations further...
\n\nhttps://www.thalielab.org/en/call-for-proposal/de-la-transition-ecologique-a-la-decroissance-du-bon-usage-de-lart#.WaY0Q62B2EJ
From ecological transition to degrowth and the effective use of art
Based on an examination of artisanal practices and new forms of food production, the foundation invites visual artists, curators, designers and chefs to submit a project on the theme of deceleration, that explores concepts for the collaborative economy (recycling, textiles, 3D creation, food\u2026) and has a social impact.
Reading deeper into this thread, fully supporting the emphasis on active agents.
\n\nI posted the comment below on slowness a few weeks back (copied it in below). & since then have been having lots of conversations about time - some people emphasising \u201cjust doing and doing now\u201d and others emphasising \u201cslow process & the long view\u201d. They feel complementary perspectives: acting fast, but doing so with a vision of the long-term & that some work / relationships / studies / projects bear fruit over serious time. One of the most illuminating points came from a musician who said that to play super-fast musical passages it was necessary to get his body into a very slow state. There\u2019s something here about time mastery.
\n\nSo I wonder whether there\u2019s a bubble of slowness that can be grown inside this fast-paced Incognito Battleclash idea? @matteo_uguzzoni
\n\nTowards supporting @winnieponcelet \u2018s fly fishing perhaps?
\n\nOr guerilla mycology/ seed bomb idea? Planting plants or mushrooms in public spaces, record the points they were planted, returning months later - documenting slow process\u2026 Seeds planted\u2026
\n\nI love the citizen psychological science suggestion. Maybe some of the info collected from the public can be about people\u2019s experience - ie they\u2019re experience living in the area - perceptions of care - support\u2026 Human experience as part of the biodiversity. Might all tie in well with the local collective intelligence / local wifi system.
\n\nFaranak Mirjalili and me will collect dreams from attendees at the Open Village meeting in morning sessions.
\n\n& wow! This water project is impressive. Know little of the watershed in Brussels so can\'t input on that. But really interested to hear more about http://www.plagespropres.ch/
http://wiki.hackuarium.ch/w/Micro_to_Macro_Water_Pollution
at the festival.
"Part of the cascade project was around slow culture hacks. Activism that emphasises changing the pace of the city and foregrounding presence, vulnerability and the beauty of the earth. The dance groups on the streets for the COP21 shifted me.
\n\nBeen thinking about action on the streets & since culture is obsessed with excitement - anything too high paced is likely just to feed the machine and be yet another ride on the wheel... For where there is hectic business, there is all the distraction, blindness and madness of this suicidal culture. This sense that \u201cthe time is now\u201d can be met by something present. Instead of putting that intense feeling into multiple short-lived projects, to make energy matter. To use energy with real intention. One way of spreading courage and alternatives is to be in total presence. What about an action that expressed a great slowing down into presence during the Open Village? Slowing down the pace of the streets with movement. Done a few things like this before - I led a slow motion walk up Oxford high street in the last decade to protest the Iraq war. So - what about a short workshop and then an action of dancing slowly (in whatever your style) in the streets? Gifting pieces of fruit to passers by? A way of spreading the invitation. I\'ve made mistakes in the past about acting before the time is ripe. Doing too much. In rushed ways. Not preparing long enough to really pull it off. There is a mastery to carpe diem - in plucking the day when it is ripe. If that can tie in with urban game you are working on - great - I\'m on for this & looking out for times and places for this creative plan."
\n
/// In the wilds of Portugal and little connectivity here unfortunately - will check in with this conversation next week ///
', u'post_id': 33985, u'date': u'2017-08-28 11:29:35'}, {u'user_id': 2754, u'title': u'Hi all, great exciting developments! \n\nWe printed labyrinth ', u'comment_id': 34885, u'content': u'Hi all, great exciting developments!
\n\nWe printed labyrinth stamped seed bombs for our COP21 Cascade and attached messages to them. It was playful and cheap. http://cascade.network/glitchy-transmissions-from-the-now/ Could organise getting some seeds printed before the Open Village? What would tie in with the theme I wonder?
\n\nI love the idea of guerilla mycology - really happy to help with this.
', u'post_id': 33985, u'date': u'2017-08-28 10:39:56'}, {u'user_id': 3704, u'title': u'some citizen science can include cleaning up your ', u'comment_id': 34809, u'content': u'some citizen science can include cleaning up your favourite environment - but quantitatively! our colleagues from \'hammerdirt\' had already been cleaning beaches, with a focus on quantitative statistics, but as lifeguards, they were also concerned about skin rashes and gastro-intestinal illnesses that were more frequently occurring each summer. At Hackuarium, we helped them get started on systematic microbial analyses of local waters ... (lake and river, and we even recently had an amazing visit to their local sewage treatment plant)
Here are a couple of links:
http://www.plagespropres.ch/
http://wiki.hackuarium.ch/w/Micro_to_Macro_Water_Pollution
We repeated the lake water sampling this year, and I hope to be able to talk about our compiled results at the festival...
that can be done with my pirate radio, or how to locate locally tangible dots throught a meshnetwork, (peoplesopen.net) everyone has a phone (even in cuba or remote places in Brazil) I did a prototype in Cuba and builded a live streaming modul pulling off live performances from a place far away from the actual poor neigborhood I was building the system...
you could do is a huge bloc party with the swarm of smartphone and few connected sound systems... after you can locally play with the connected phones (even use there connected power to work on some tangible stuff)...the kids I teach how to do the system now play minecraft with it....proper cuban hackers #ELPAQUETESEMANAL > https://medium.com/@dailylaurel/afro-cuban-meshnet-in-santiago-de-cuba-52f5531462f0
but thats just a local wifi system that I would love to work on because you can implement almost anything onnit...give free internet to the people, map stuff, local collective intteligence etc... etc... will work on this in Morocco with @matthias if he is down to it of course
i Don\'t know maybe @dailylaurel has some ideas. or @kate_g :)) Meet @Sabouny and @Yosser btw, they\'re into clowning and we\'re chatting in the OpenVillage MENA conversation.
\n\nArgh before I forget, have you seen this? http://openvillage.edgeryders.eu/workshop/ Didn\'t you say something about Jordan?
', u'post_id': 33985, u'date': u'2017-08-24 12:52:17'}, {u'user_id': 4, u'title': u'Not sure, Matteo. I suck at this naming ', u'comment_id': 34654, u'content': u'Not sure, Matteo. I suck at this naming thing.
I think that smartphones are enough (the palyers will use it anyway during the game), and maybe because we are starting the Festival we can also go with the "mapping" approach, besides it\'s pretty basic (with humans as sensors/data processors)..then during the Festival they can go deeper and discover all the process. It\'s like a tutorial / entry level on the topic.
\n\nWhat do you think?
', u'post_id': 33985, u'date': u'2017-08-24 10:43:50'}, {u'user_id': 347, u'title': u'Do you think that we could add adrift ', u'comment_id': 34649, u'content': u'Do you think that we could add adrift with other words or it\'s enough by himself.
Like:
Amaze Drift
City Adrift
E-drift
Underdrift
Not sure. "Wanderaze" I don\'t even understand. I am no native speaker myself, but "Drifted" also sounds a bit borderline as "drift" is not a transitive verb. Shame, because I like that one. You might like "adrift" ("alla deriva").
', u'post_id': 33985, u'date': u'2017-08-22 09:31:38'}, {u'user_id': 3362, u'title': u'There is not much without devices. Smartphones are ', u'comment_id': 34532, u'content': u'There is not much without devices. Smartphones are usually the lowest tech way. Like this litter tagging project -> https://openlittermap.com/
\n\nThen there\'s many where you are required to send pictures of snails, birds, ... to map biodiversity. These biology projects are usually fun and have a community around them, but to be honest, most other existing low-tech projects are low-tech because the organizers have designed them that way. They are a dumbed down version of the actual scientific research and citizens are invited to participate within the (limited) possibilities the scientists carefully designed. Participants are just human sensors or data processors.
\n\nThis goes against the citizen science we put in the spotlight during the festival, where citizens are active agents in every phase of the research from ideation over planning all the way to conclusions. This is more intense and inevitably involves technology. We\'ll have demos in the program so it\'s not necessary to put them in the urban game.
\n\nThat being said, we can also design our own \'citizen science\' project around anything that can be measured. Think correlating driver friendliness with car price range, checking cleanliness of public toilets, I don\'t know. Designing the project can be part of the game, though I\'m not sure how hard it is or how long it takes to think up something that makes sense. Would love to see us try though @matteo_uguzzoni !
', u'post_id': 33985, u'date': u'2017-08-19 19:49:20'}, {u'user_id': 347, u'title': u'Yeah, maybe I need some links to example ', u'comment_id': 34512, u'content': u'Yeah, maybe I need some links to example of citizen science, like can you scan air data without devices? Or check water hardness without filters or devices (yes more than tech probably I was thinking about devices)..
Guerrilla actions > great!!
Okay! I\'m going to Brussels to scout for a suitable location for the fly fishing in the vicinity of the venue.
\n\nWhat do you mean by citizen science that is not tech related @matteo_uguzzoni ? Something like citizen psychological science?
\n\nAnother idea that might be fun: seeds bombs or guerilla mycology. Planting plants or mushrooms in public spaces. No effect during the festival, but fun anyway to know that something might be there in a year, can even revisit it at some point.
', u'post_id': 33985, u'date': u'2017-08-18 12:10:54'}, {u'user_id': 347, u'title': u'Hei Winnie, thanks for all the suggestions!\n\nAbout the ', u'comment_id': 34491, u'content': u"Hei Winnie, thanks for all the suggestions!
\n\nAbout the fishing demo, that's interesting and i'm sort of agree with you that usually Urban Games are very active and fast, you are playing against the time.
Maybe one way to incorporate that in the game too could be to think it like one of the Checkpoint between the missions, that are spaces and interactions that are calmer, so maybe if the spot where this activity will take place is in the game area we can insert it like that.
About the DIY analysis and citizen science, do you think that is possible to have also some experience that is not tech related, do you have links or suggestions so I can dig deeper on that?
\n\nThanks!
", u'post_id': 33985, u'date': u'2017-08-18 11:00:09'}, {u'user_id': 347, u'title': u"Names!\n\nHere some suggestions, i'm not a native speaker ", u'comment_id': 34490, u'content': u"Names!
\n\nHere some suggestions, i'm not a native speaker so i'm not sure if they works in english.
\n\nUnderCity
Village Invasion
Open Ground
Expl\xf2
LabyrHunt
Wanderaze
Drifted!
I love the concept of derive so wander/drift are words that sounds cool.
And also the concept of Village / City / Playground.
What do you think?
", u'post_id': 33985, u'date': u'2017-08-18 10:54:00'}, {u'user_id': 3362, u'title': u"Yay, I'm a big fan of city games ", u'comment_id': 34075, u'content': u'Yay, I\'m a big fan of city games we dabbled in it ourselves in our city of Ghent a few years ago with a cat-and-mouse style Vampire Hunting city game.
There is another session that we\'re planning to be somewhere in the city: @albertorey \'s fly fishing demo. Is there a way to make that part of the city game? Eg.
\n\nWe were also hoping to do some DIY water quality analysis during that session. I think there\'s plenty of potential to do small citizen science projects during the game . Anything that produces data, basically: air quality, quantity and type of trash on the ground, dangerous obstacles for bikes, spotting bird nests, collecting urban fossils. Pinging @rachel as well.
Not sure if the tempo of the two activities would clash or not. City games are hectic in my experience, while I envision the fly fishing as a relaxation moment.
', u'post_id': 33985, u'date': u'2017-08-07 14:33:27'}, {u'user_id': 3367, u'title': u'Sounds great! Will think about a name. ', u'comment_id': 34017, u'content': u'Sounds great! Will think about a name. Thanks for all the work.
', u'post_id': 33985, u'date': u'2017-08-05 19:35:16'}, {u'user_id': 4, u'title': u'I have a feeling Brussels might be a ', u'comment_id': 33991, u'content': u'I have a feeling Brussels might be a right place for urban games. Lots of young people, plenty of places to lounge about, Belgian surrealism & playfulness. ..
', u'post_id': 33985, u'date': u'2017-08-04 19:15:00'}, {u'user_id': 3, u'title': u'It got hidden probably sometime during the new ', u'comment_id': 38126, u'content': u'It got hidden probably sometime during the new platform migration. I see it\'s not even updated according to the latest - so maybe add there what you consider relevant for next Saturday session. Then we can tweet it out, and link to it from the main festival site:
\n\n\n', u'post_id': 812, u'date': u'2017-10-12 08:52:02'}, {u'user_id': 3433, u'title': u"Hi @noemi, that link isn't working for me, ", u'comment_id': 38124, u'content': u'Hi @noemi, that link isn\'t working for me, nothing happens when clicked. I also found a link on a festival page to that says "share your proposals,..", but it gives me the message something like : "oops, page unavailable or permission required."
', u'post_id': 812, u'date': u'2017-10-12 08:41:57'}, {u'user_id': 3, u'title': u'Your session post is now up to date', u'comment_id': 33451, u'content': u'Hey @Bernard , I totally missed your request. Not sure what was the problem, as author you should definitely be able to edit it.
\n\nI included the info you provided, so the title and description now suit the latest version. Title also changed. Here it is, let me know if I can help in any way. Looking forward!
', u'post_id': 812, u'date': u'2017-07-19 16:00:04'}, {u'user_id': 3613, u'title': u'combined practice ', u'comment_id': 27825, u'content': u'Hi @Bernard, I\'m just leaving \'normal\' work duties to be more in Edgeryders headspace as you\'re entering nursing duties. We\'ll miss your input on the call later.\xa0
\n\nThe way you\'ve combined some embodied practice with verbal overviews could work well. I think what you\'ve outlined could fit under either theme. If we work something up under the Architectures of Love theme then I\'d be looking for the overview or the session itself to start to tease out what had been learned through both experiences about the enabling factors that made citizen care responses more likely and supported their continuation.\xa0
\n\nIf its easiest we could set up a call at a time that suits you to see if that fits with your thinking? \xa0
', u'post_id': 812, u'date': u'2017-07-05 07:51:29'}, {u'user_id': 3433, u'title': u'Working Title: Creating Situations for Healthy Experiences.', u'comment_id': 27644, u'content': u'@Gehan, @Noemi. I can\'t seem to edit old post; "Galway Monastery" on the proposal page so I\'ll use this post for now as a 2nd draft, and will edit in the coming days..\xa0 It may change to be more focused on An \xc1it Eile\'s European Capital of Culture project; "Pilgrim".
\n\nStarting with a 5min grounding meditation participants will then get a short overview of work from two groups from the West of Ireland; Transition Galway and An \xc1it Eile (The Other Place). Citizen led care and self care from the garden, to the (un)Monastery to the meditation mat and back again.
\n\nThen a 5min seated stretch (yoga asana), followed by a look at An \xc1it Eile\'s network mapping and resource sharing as part of European Capital of Culture, Galway 2020 project; "Pilgrim". This will include some of the Galway stories shared in Opencare, including Cos\xe1in Community Wellness. Participants will then be invited to take up their pens and comment, question, suggest links and direction on a paper map of An \xc1it Eile\'s network as it stands at the time of OpenVillage in October.
\n\nThis should probably have more detail. I\'m still not sure if it fits in Architectures of Love or Living and Working Together. I\'ll be nursing this week and won\'t be able to attend the community call, hopefully Ken will be there.
', u'post_id': 812, u'date': u'2017-07-03 20:06:02'}, {u'user_id': 3433, u'title': u'Working Title: Creating Situations for Healthy Experiences.', u'comment_id': 26968, u'content': u'@Gehan, @Noemi. I can\'t seem to edit old post; "Galway Monastery" on the proposal page so I\'ll use this post for now as a 2nd draft, and will edit in the coming days..\xa0 It may change to be more focused on An \xc1it Eile\'s European Capital of Culture project; "Pilgrim".
\n\nStarting with a 5min grounding meditation participants will then get a short overview of work from two groups from the West of Ireland; Transition Galway and An \xc1it Eile (The Other Place). Citizen led care and self care from the garden, to the (un)Monastery to the meditation mat and back again.
\n\nThen a 5min seated stretch (yoga asana), followed by a look at An \xc1it Eile\'s network mapping and resource sharing as part of European Capital of Culture, Galway 2020 project; "Pilgrim". This will include some of the Galway stories shared in Opencare, including Cos\xe1in Community Wellness. Participants will then be invited to take up their pens and comment, question, suggest links and direction on a paper map of An \xc1it Eile\'s network as it stands at the time of OpenVillage in October.
\n\nThis should probably have more detail. I\'m still not sure if it fits in Architectures of Love or Living and Working Together. I\'ll be nursing this week and won\'t be able to attend the community call, hopefully Ken will be there.
', u'post_id': 812, u'date': u'2017-07-03 20:05:13'}, {u'user_id': 3613, u'title': u'inner spaces as enabling factors?', u'comment_id': 26062, u'content': u'@Bernard, your thoughts,\xa0have made me think. I really didn\'t intend for my session to be so closely linked to policy. I\'m going to re-write a clearer description somewhere. For me it\'s more about exploring how we create the enabling factors rather than be overly reliant on top-down policy.\xa0And what kind of policy supports citizen impulses around collective care\xa0rather disrupts? It sounds like you have built up quite a bit of experience\xa0of how practices such as meditation create inner space. This would be a good example of an enabling factor for citizen led care and self care.\xa0
\n\nI\'m just noticing that the\xa0Afternow Project website is down. It was a great resource. But the main point of this research project by the Dept of Public Health at Glasgow Uni was to highlight that all the great public health challenges of the past had been solved mainly by structural changes like sanitation and clean water and some behavioural change. The public health challenges of modernity will no longer be addressed in the same way. They are things like addiction, violence, suicide. Their research concluded that it was inner and cultural change that would be called for.
\n\nYou could reference the work in Indian prisons but really draw on the first hand experience you\'ve built up through your work in Galway.
\n\nWondering how that lands?
', u'post_id': 812, u'date': u'2017-06-26 19:54:00'}, {u'user_id': 3433, u'title': u'Thanks Noemi', u'comment_id': 25464, u'content': u'Useful distinction. I\'m now leaning more towards identifting hurdles, bridges, bonding oppertunities, what\'s best to share?, what\'s not shared?, social currency, open value networks?
\n\n@Gehan, just a thought.. Meditation in policing? Success of Vipassana in prisons in India vs Vipasana used as punishment for prostesting teachers - this happened on the course I done after the death of Mr Goenka, bad vibe. Meditaion used as replacement for detention for kids.
', u'post_id': 812, u'date': u'2017-06-25 12:43:16'}, {u'user_id': 3, u'title': u'Small distinction', u'comment_id': 25412, u'content': u"Forgive me for stepping in unasked for,\xa0
\n\nJust a heads up to say that there is a dedicated (3rd) big theme around\xa0working and living well together which will encompass I believe physical community spaces and some aspects of mental health and\xa0collective wellbeing ensured by tight communities. I would keep your work on that, Bernard,\xa0outside of the impact/ policy discussions. This seems natural already, as\xa0the key situations you listed above seem like a good fit with Gehan's focus.
\n\nNo guidelines as to what a session could be, or format - it just needs a clear description on\xa0a session page\xa0so that attendants know what to expect, and perhaps a little flexibility wont hurt - adjusting later to the constrains of the space, sequencing of sessions, other incoming demands etc.
", u'post_id': 812, u'date': u'2017-06-24 10:14:00'}, {u'user_id': 3433, u'title': u'Narrowing..', u'comment_id': 24984, u'content': u'Thanks @Gehan. One potential session springs to mind: "Creating situations for healthy experiences that faciltate collaborations and drive outcomes."
\n\nKey situations: Galway Monastery, SOUP, An \xc1it EIle\'s "What Now?", Transition Galway Garden.
\n\nCollaborations that have formed, and outcomes that have occured would be presented as digrams using the various logos of groups, on a timeline. Branding can be an effective language, shows diversity of collaborating groups through symbols/colour, and is also easy for the business sector and authoritive bodies to understand. It\'s also how I organise stuff in my head every few months, so I guess that could be a good next step for me.
\n\nMaybe another potential session or two might spring to mind. How long might a session be? Are there anymore guidelines on what a session is? Workshop, presetation or maybe a mixture of both? The session could start with a 5min gentle seated yoga asana stretch, and a 5min circussy catch wordgame.
\n\nPeer review is something I must give more thought to.
\n\n"The iot assisted garden" - might be a good fit for Open Science and Citizen Science for more inclusive healthcare. I think Ken will talk to @Winnie about this soon.
', u'post_id': 812, u'date': u'2017-06-23 16:31:51'}, {u'user_id': 3613, u'title': u'a session as part of enabling factors theme for OpenCare?', u'comment_id': 23982, u'content': u'Hi @Bernard
\n\nInspirational work... and impressive stamina as others have already commented!
\n\nIt\'d be good to get your thoughts/contributions to the theme as it firms up. This will help to shape your\xa0session in a way that will\xa0contribute to collective insights on this topic.\xa0
\n\nTheme: better understanding policy in context of a top-down system. Even good policies may be limited in their effectiveness - that is by the time they cascade down to the level of effect/impact they are often either diluted or do not produce the effects desired by the original intentions of the policy no matter how well meaning these might be.\xa0Another way to look at it would be this: living systems theory has turned on its head the Victorian world-view that imagined that unless mankind were imposing order from top down then chaos would ensue. The new sciences - nano biology, quantum theory - have revealed the extent to which order is a natural impulse (fractals\xa0being a beautify example) and that many of mankind\u2019s efforts to date have disrupted this impulse.
\n\nSo what does this say about policy? How do we understand more effective ways to enable our natural impulse as human beings to be caring and compassionate? How do we re-conceive of policies in the light of this - to support and not disrupt the collective impulse to help our fellow human beings?\xa0
\n\nFrom this understanding - how do we understand the instruments and tools of the collective, of citizens - what do they look like in relation to health and social care? Equally, how do we understand the instruments and tools of the state (such as policy) - how can these be designed to enable the collective response that is the basis of welfare in traditional societies?
\n\nThe next question would then be how this might inform the nature of the session you\u2019d offer. It seems there\'s so much you could contribute for joint exploration.\xa0
\n\nThere seems to me to be a common thread in what I\u2019ve encountered of what you\u2019ve sent through. Its something about the format of the various happenings. e.g. Monastery, Galway Soup - that genuinely reflect values of welcome, bringing people in, shifting power, playing with stereotypical roles to create new experiences that have greater meaning - that get under the superficial. Does that make sense? And something about new recipes - the way you put together interesting elements to create new experiences/outcomes. Perhaps you\u2019d want to focus on one of the three thematics? Sharing what\u2019s really worked and using peer review (I\u2019m gathering that this is something ER are particularly keen on) to solve some things that aren\u2019t yet clear/sorted? Which of the three thematics connects most strongly to the health and social care? There\u2019s also the tiny houses & homeless folks work you mentioned. Might this also be a possible session?\xa0
\n\nYou\u2019ve so much good work to choose from - would a way forward be for you to suggest 2-4 possible sessions and we work up the one that has the best connection to the theme?
\n\nThanks\xa0
\n\n/gehan
', u'post_id': 812, u'date': u'2017-06-23 13:38:51'}, {u'user_id': 3433, u'title': u'Watching things grow feeds the soul:)', u'comment_id': 20731, u'content': u'Thanks, we\'ve had some struggles such as low volunteer numbers and consistancy of volunteers. Still haven\'t cracked that. I think there\'s potential for job creation as we outlined here and here in our visioning document, and submitted to Galway City Council, as they invited submissions from community groups for policy suggestions (particularly Policy 5.). Gaining employment doing something I enjoy, that also benefits my community was a driving force for at the start. There doesn\'t appear to be real jobs materialising in this area in Galway, so I\'m staring to shift my gaze a little.
\n\nPlenty of successes there though; learning, eating, conversation, connections and engagement with school activities. This year the focus is on getting more involvement from parents of the school kids and people in the neighbouring houses.
\n\nStamina comes from following a common sense approach to resilience. Food is a base need, and the process of growing it benefits health, community, physical environment and financially it helps a little to get veg every now and again for our efforts. I can\'t imagine not growing some food every year. It feels like the most rational thing I do with my time.
', u'post_id': 812, u'date': u'2017-02-16 17:02:45'}, {u'user_id': 4, u'title': u'Impressive stamina', u'comment_id': 19534, u'content': u'@Bernard I am looking at the Transition Galway website:
\n\nSince October 2012 we have been working on the Transition Galway community garden [...]\xa0\xa0It\u2019s a nice wee plot, kindly offered by the school to our group. Together with the pupils, parents, teachers and members of the community we have been growing food and improving biodiversity.
\n\nA TG-school collaboration around gardening, biodiversity and community building that\'s been going onto five years. That\'s impressive. This is how you build a culture of teamwork and societal resilience. If you guys can start a community garden and keep at it for five years, you can probably get ambitious. Where do you think the stamina come from?
', u'post_id': 812, u'date': u'2017-02-11 13:59:00'}, {u'user_id': 3, u'title': u'Quote of the day', u'comment_id': 19490, u'content': u'"the arts can draw people in, but health and environmental issues can sometimes scare people off"
\n\nI feel this is an important insight.
', u'post_id': 812, u'date': u'2017-02-11 09:17:00'}, {u'user_id': 3433, u'title': u'Fluidity in structure.', u'comment_id': 19435, u'content': u'Aye/yes, a big diverse melting pot of stuff. Not pigeonholing, but allowing each group to have their own identity. It could be more clearly spelled out in our mission, and might do so in time, but also being aware that the arts can draw people in, but health and enironmental issues can sometimes scare people off. More structure and over longer timeframe feature in our recent proposal, but not too ridgid. Care can be tough work. Rest, play and time to breathe hopfully will lead to stronger, healthier, more productive outcomes.
\n\nSpeaking of outcomes... Cos\xe1in are doing an overnight art therapy session with Alan at Cregg Castle tomorrow and Sunday. Also, when promoting "What Now?" I spoke with Claddagh Arts Centre, so when I went looking for help to build an outdoor classroom at the Transition Galway school/community garden, Michael from the centre gave his time, machinery and a very genorous price on stonework. Busy week = very happy school princial:)
I think that\'s the point of being a collective, right?\xa0It\'s relevant to have a shell like AAE which enables its different members and people connected to it to do things based on what interests them - it means that when you do an arts event there are people who run workshops on the side and activities that have a wellbeing component. It is community care at its core, because they are social activities where people inevitably learn from each other. Does care need\xa0a clearly\xa0spelled out mission? I don\'t know. I\'ve always liked how AAE feels very free, but at the same time I\'m wondering if working together with Galway 2020, consumer panels in Cosain etc\xa0and needing to projectify in a more structural way is useful, and the more strategic level taken since your early days helps your work or not?\xa0Obviously, doers will always be doers no matter what \xa0I\'m just wondering though.\xa0
Yes, that\'s it. Taking it further though, would be to create rural/nature situations where healthcare professionals can rejuvinate and connect with people from different professions. And yoga, nature based activity and arts for teens in rural settings. There is already a will for this to happen from For\xf3ige, as a means to curtail troubeld behaviours. ..and the elderly, we especially need alternative services as our elderly population grows.
', u'post_id': 812, u'date': u'2017-02-10 14:26:54'}, {u'user_id': 4, u'title': u'Great answer! ', u'comment_id': 17145, u'content': u'I think I get it. So, you see health and sustainability as an essential component of cultural activity. This goes back to the issue of activist burnout, which keeps recurring in the Edgeryders community. To ensure health and sustainability, you bake prevention/wellness activities into cultural programmes. So, a side effect of doing culture is (over time) a reduction in treatment of acute health conditions.\xa0
\n\nI am starting to think that this is where most of the impact of communities on care comes from. Communities can "corral" us into avoiding destructive choices (heavy drinking, overeating...). They provide support in wellness/preventative activities, and that reduces human and financial costs of havingn to treat acute afflictions down the line.\xa0
', u'post_id': 812, u'date': u'2017-02-06 10:00:47'}, {u'user_id': 3433, u'title': u'Working with the seasons:)', u'comment_id': 14308, u'content': u'Thanks @Alberto,
\n\nThrough collaboration, listening to local caring initatives/groups and providing what we can. I see community and care as part of culture alongside the arts. Examples;
\n\nat "Our Place" event we brought yoga by Green Lotus Galway (GLG) and circus workshops for kids by Hoopla Troupla\xa0 (social inclusion in a socio-economically disadvantaged area).
\n\nat What Now? A Cultural Weekender, there was Yoga by GLG (50% of donations went to familycarers.ie), mandala making by Cos\xe1in (community wellness group) and teen open-mike by For\xf3ige, tribal dancing, reclaimed pallet furniture as part of design exhibition and much more. We\'ll be revamping our website in time and a fuller picture of that will appear.
\n\nat preMonastery (report on website soon), which itself was semi-retreat in nature, yoga and mental wellbeing featured. A preliminary looks at the feedback forms suggests positive effects wellness of participants. Outcomes from preMon include a collaboration between Cos\xe1in and Pais\xfain F\xe1isuin, where they ran an event and raised \u20ac1440.\xa0 And Cos\xe1in doing an art therapy retreat in 2 weeks with Alan, our host at the castle. Hopefully a yoga workshop with David Jones. It got myself and Pat out chopping through a community walking trail and talking about building med/health/builing. Developing designs/concept at present. And food, communal eating = learning about nutrition and food/water sources.
\n\nA\xc1E originated as an arts group but has been looking at culture in the broader sense, integrating health and physical environment/ecological sustainability. A\xc1E\'s arts reviews and events are key to engagement, facillitating connection of groups and situations of care at local level.\xa0 And celebration:) David\'s statement is from June 2015, it starts with arts, then evolution:)
', u'post_id': 812, u'date': u'2017-02-04 19:26:36'}, {u'user_id': 4, u'title': u'The frontier between culture and care', u'comment_id': 6885, u'content': u'Welcome back, @Bernard
This is impressive work. As I looked up A\xc1E and what they do, I noticed they seem to be focused on culture (David Boland\'s statement here). So I\'m curious: where do you see the interface between culture, community and care?\xa0
', u'post_id': 812, u'date': u'2017-02-04 08:11:08'}, {u'user_id': 3311, u'title': u"Hi @xenia Thanks for the feedback. I'd be ", u'comment_id': 37943, u'content': u'Hi @xenia Thanks for the feedback. I\'d be glad to share my experience. I\'m only just rolling out into testing various conditions when designing projects with multiple parties and would be in a position for greater sharing in +- 9 months. I\'ll be publishing project progress broadly and I\'m very open to collaborations and sharing.
\n\nYour work sounds exciting and I\'m just about attempting to work on various pyscho-social issues as the communities I work in have some sense of communal trauma (past, present and future), which I think co-design initiatives installed and mostly prompted by community has the potential to provide an outlet or expressive means. This, of course, is a stepping stone but i believe street arts and art has the potential to install creative projects and provide a catalyst for dialogue and communication. Let\'s arrange a meet! During conference or after. I should be around Brussels for a day or two after the festival
', u'post_id': 33730, u'date': u'2017-10-09 12:28:08'}, {u'user_id': 4086, u'title': u'Hi nabeel_p, Thank you for sharing all this ', u'comment_id': 37879, u'content': u'Hi nabeel_p,
Thank you for sharing all this info about your project, sounds super inspiring and creative finding ways to bring together arts and science via collaborative community-focused approaches. Being myself a teaching professional for children with special needs, I would be very interested to get new ideas of raising social awareness towards inclusiveness of children with special needs in the school community. Moreover, as I am a supporter of Community Education and Community Learning Development, I would like to hear your views on different framework conditions that can enable individuals and communities by learning to make positive changes in their lives and communities. I am currently based in Brussels and very keen on participating in the festival on 19-21 October (unfortunately only on day 3 as I have to work the previous 2 days\u2026) and meet people like you who are already creating self-sustaining projects for the common good. Looking forward to meet you all in the festival!
@winnieponcelet Excellent. I have planned to attend the Festival. If I took the 06:30 Train from London I would be in Brussels at circa 08:40 and will try to locate the venue. So it\'s very exciting that we\'ll be able to meet.
', u'post_id': 33730, u'date': u'2017-09-21 09:36:13'}, {u'user_id': 3633, u'title': u'Hi @nabeel_p and @winnieponcelet, I would love to ', u'comment_id': 36707, u'content': u'Hi @nabeel_p and @winnieponcelet, I would love to join you at this Festival. But unfortunately I won\'t be able to make it, as I\'ll be at another conference in Antwerp at that moment. Hope you have a fruitful get together, and I would love to hear what was discussed at the Festival.
', u'post_id': 33730, u'date': u'2017-09-20 17:33:29'}, {u'user_id': 3362, u'title': u'I hope both of you can make it! ', u'comment_id': 36703, u'content': u'I hope both of you can make it! I am also keen to learn more about your work in person.
', u'post_id': 33730, u'date': u'2017-09-20 17:07:06'}, {u'user_id': 3311, u'title': u"Hi @carolinem Thank you. I'd definitely like to ", u'comment_id': 36698, u'content': u'Hi @carolinem Thank you. I\'d definitely like to follow your progress as well. Will you be at the Festival in Brussels? I\'m just trying to organize transportation from London-Brussels and looking at Accommodation. It would be wonderful to have an in-person conversation. I am completely interested in your theme, and may be able to see linkages between your work and my own work at the moment. I\'m keen on working on more psycho-social and psycho-somatic themes in varied context using an organic community driven approach.
', u'post_id': 33730, u'date': u'2017-09-20 15:48:05'}, {u'user_id': 3633, u'title': u'Hi @nabeel_p, No problem at all. Thanks so ', u'comment_id': 36696, u'content': u'Hi @nabeel_p,
No problem at all. Thanks so much for sharing these documents with me. The booklet sounds really fascinating. I just returned a couple of days ago from \'photovoice\' fieldwork in Uganda (on social inclusion of children with special needs). I\'ll go through your booklet, it might be of inspiration for the dissemination of the findings. Right now, we are thinking in the direction of a small exhibition, but this might also be a fruitful avenue for a follow-up aspect of this research project.
Definitely keep me posted when you can share more of the processes/results of your current work!
', u'post_id': 33730, u'date': u'2017-09-20 15:39:15'}, {u'user_id': 3311, u'title': u"Hi @carolinem It's so great to hear from ", u'comment_id': 36681, u'content': u'Hi @carolinem It\'s so great to hear from you and I do apologize for the delay in my response. I thought I had presented you with a response before. My sincerest apologies. It would have been so wonderful if you were still working in Cape Town.
\n\nTo address you question, the work I did with MAVC was hosted by the organization I used to work for called The Sustainable Livelihoods Foundation. They have recently published the findings of the report and can be studied here: http://www.livelihoods.org.za/wp-content/uploads/2017/08/MAVC_SLF_Pr3Final_Translating_complex_realities.pdf .
\n\nI would gladly forward you copies of the Photobooks should you send your email address to nabroe@gmail.com (my personal email address) . Alternatively, a low res copy of the book can be found here: http://livelihoods.org.za/wp-content/uploads/2016/09/The-Heart-of-the-Matter_Final_small.pdf .
\n\nMy current work is all about partnerships and co-design processes for community driven communication strategies in the context of health, using Arts as platforms. This is exciting and I\'ve been involved in various test phases of the project. I\'ll soon be launching projects across South Africa, testing its efficacy and its reception by communities. As my focus is co-design and collaboration I\'m very keen on continuing conversations and forging relationships in the name of Healthy communities and Active Citizens.
', u'post_id': 33730, u'date': u'2017-09-20 13:38:19'}, {u'user_id': 3633, u'title': u'Hi @Nabeel_p,\n\nA pleasure to meet you too. I ', u'comment_id': 33825, u'content': u'Hi @Nabeel_p,
\n\nA pleasure to meet you too. I am based at the University of Antwerp in Belgium. For my PhD I used to live in Cape Town for a while. Right now, I don\u2019t visit Cape Town that often anymore (unfortunately :)). But very happy to let you know when I am around!
\n\nThe quote you write about the CCWs and TB is very powerful. CCWs do an important job, which remains often still under the radar. At the moment, I am thinking of making\xa0a short documentary about their amazing work and life \u2013 to create more awareness about what they are doing.
\n\nYour idea of testing different ways of presenting data in communities sounds really interesting! Your project funded by the Making All Voices Initiative sounds amazing. Do you have any material to share with us about this? Same holds for the photovoice booklet you mentioned. Would love to learn from your rich experience.
\n\nWarmest regards,
\n\nCaroline
', u'post_id': 33730, u'date': u'2017-05-12 13:25:22'}, {u'user_id': 3311, u'title': u'Energized!', u'comment_id': 33824, u'content': u'Hi @CarolineM
\n\nSo great to meet you. If you are based in CT, then please do reach out I\'d love to meet with you and consider a conversation in person. I agree with you with regards to relaying information beyond academia and forging collaborations between academia and larger/broader audiences. This has been the preemptive step to the current project and various talks I\'ve had with various institutions.
\n\nI agree that visual approaches bridge educational divides and somewhat diffuses jargon. This has assisted me in relaying scientific knowledge to other audiences. I\'ve been actively involved in collaboratively designing Events to this purpose, which not only provides knowledge in "digestable" means to community members, but are key for Scientists to observe as well. Each event has been learning for me, and I\'m now testing the efficacy of presenting data in a different manner in communities, i.e. arts, or fun interactive events within communities in a pop-up fashion.
\n\nLanga has a very dynamic collaboration scene between artists and community members, as well as the private sector. It\'s a phenomenal community and I was assisting with a local tech-startup focused on providing community members with tech-training. Completely fascinating and I am trying to access various communities, as I find that given South Africa\'s current dynamic and transport restrictions communities tend to be territorial bound in its activities and collaborations.
\n\nThe Work with local CCWs is still a focus for the Sustainable Livelihoods Foundation, who I was employed by. I managed various projects using various participatory approaches to explore lived experience and provide an outlet for expression. One of our projects funded by the Making All Voices iniative sought to bring these issues faced by CCWs to the City governance structure. It was a phenomenal experience trying to track down CABS and Clinic Boards (whom only exist on paper). There is a network we found that are actively working for the benefit of CCWs, but gov has cut funding for this network and introduced a new structure that is completely defunct and has no community representation (based on my findings in 2016).
\n\n@Noemi you\'ve raised an important point. " How do these \'larger audience\'\xa0responds\xa0to new formats? What constitutes reaching results for you? More awareness?\xa0or more active behavior across the different community groups?"
\n\nThis is a trying question. In my personal work using participatory methods and facilitation, I\'ve found that audience members generally respond positively to these new formats, perhaps because it is visual and emotion-invoking. When producing the Digital stories and the Events with CCWs, we found people openly reacting to persons they see everyday and that they already know function within communities in a very different light. Suddenly we had a hall of persons speaking about CCWs, valuing them differently, wanting conversations, etc. Immediately support was forged. IN one meeting, I had a community member request the microphone and state "If i only saw this video 6 months ago my friend would be alive. He would know what these people do in the community and I would understand what my friend is going through. He died because the TB medication made him sick and he didn\'t want to be sick like that so he stopped".\xa0
\n\nFurther to your question, each commuinty in CT alone, nevermind SA, responds to these formats differently as they each have a varied social dynamic on their own. So a one-size-fits-all simply does not work in this context, hence us wanting to test out methods that are relative to the communities we work in. Additionally, commuities (esp townships) suffer from very different public health concerns, e.g. in Delft the issue we worked on was cardiovascular disease as a majority of persons are suffering from this wheres the community 2 km from my called Vrygrond TB is the main concern. Language variation is a big issue as its not homogenous.
\n\nI agree with @CarolineM final comment. Generally, the response to these approaches have been favourable in very different settings. I\'ve only briefly touched on that in the township environment. However, when presenting the Collaborative Videos and the Photovoice booklet to an academic audience at the University of Stellenbosch Medical Campus, Scientists were overall positive and approached me for additional information. It appeared that many are "stuck" when it comes to Engagement. In conclusion, all audiences that were exposed to the project products were excited and saw the value in the packaging of information in various forms, and the difference in direct participation with varying parties in the design of those products.\xa0
\n\nThe value for me lies in the intersection of these fields or knowledge bodies. and the relationships and collaborations forged. I am truly excited by this potentiality that remains on the fringes of studies and projects.
\n\n@CarolineM \xa0If you are based in CT and have the time, please do reach out to me. I\'d love to have a conversation taking this further.\xa0\xa0
', u'post_id': 33730, u'date': u'2017-05-11 14:01:52'}, {u'user_id': 3, u'title': u'Welcome on board.', u'comment_id': 33819, u'content': u'@CarolineM it is very nice to meet you, hearb great things about you.
\n\nFrom your work so far, have you seen how the "larger audience" responds positively to new formats? What constitutes reaching results for you? More awareness?\xa0or more active behavior across the different community groups?
\n\nJust wondering about the instrumentality because of course collaboration across disciplines and more awareness are more than needed.. we all agree. Where do you see\xa0the twist, or the real ambition?
', u'post_id': 33730, u'date': u'2017-05-11 09:03:23'}, {u'user_id': 3633, u'title': u'Dear Nabeel,\n\n@WinniePoncelet\xa0was so kind to refer to my ', u'comment_id': 33814, u'content': u'Dear Nabeel,
\n\n@WinniePoncelet\xa0was so kind to refer to my work I did in Mitchell\u2019s Plain and Khayelitsha.\xa0
\n\nWith great interest I read your story. I absolutely agree that a beautiful collaboration between biomedical professionals/scientists, community members and artists is possible and necessary. Stimulating the dialogue between all these different actors sounds like a challenging, but important and rewarding task. At the moment I am trying to build bridges between the academic world and the larger audience, via video and photography. More specifically, trying to portrait the people behind the scientific numbers in a creative and\xa0emotionally touching way.
\n\nWhen I read your article, I had to think about the beautiful work that has been done within the framework of Amaphiko Redbull: https://amaphiko.redbull.com/en I visited one of their projects in Langa, which already build bridges between community members and artists. Not sure whether science communication was already part of any of their projects. Perhaps an avenue for new collaborations for you?
\n\nThank you so much for sharing your videos on the CCWs\' work with regard to TB and HIV. This is right in my field of work, and I would love to hear more of your experience using\xa0Digital Story telling, Theatre and Photovoice with regard to the CCWs\' important work.\xa0\xa0
\n\nWish you all the best with your project!
\n\nWarmest regards,
\n\nCaroline
', u'post_id': 33730, u'date': u'2017-05-10 15:08:17'}, {u'user_id': 3311, u'title': u'APPRECIATION! ', u'comment_id': 33803, u'content': u'@WinniePoncelet Thank you so much for your feedback. Between you and @Noemi I feel inspired to test these methods more rigorously and I am actively seeking collaborations with persons interested in similar thematic areas.\xa0
\n\nWow @WinniePoncelet @NiekD . Unforunately I do not have a name of the Belgian researcher but I have been working on very similar themes in Cape Town when employed by a local org\xa0. I focused very much on the Health Impact pillar of the organization, which adopted a participatory approach in its educational programmes. I managed 2 projects for the org that focused on Community Care Workers who were primarly the ground fighters for TB and HIV. We used Digital Story telling, Theatre and Photovoice as methods for engagement which were very successful in relaying lived experience for the sake of education. I\'d be happy to share key learning. This video provides feedback from Community Care Works, and their reflections on the project:\xa0https://vimeo.com/180156715 \xa0and this video features one Digital Story from a community resident:\xa0https://www.youtube.com/watch?v=dy1PHfUMCQY.
\n\nOur project on Cardiovascular disease, which I managed and lead all facilitation, used Photovoice as a methodology. It was phenomenal in highlighting illness, nutrition and general social dynamic in response to health. I\'d be happy to share this as well as the Photovoice booklet. Please note that even though I managed the project the book was developed by the org that employed me. @NiekD & @Scigrades grade, I think you may find this to be a interesting method that is participatory in all aspects of the design of the product. The following collaborative videos (a participatory method in itself in which a community develops their own video highlighting a specific issue/cause they\'ve isolated as important to develop:\xa0https://vimeo.com/186163072\xa0(Youth video focused on CVD) and\xa0https://vimeo.com/190529779\xa0(video developed by youth, elder populaton and Scientists collectively). Note that the youth developed a collaborative video and the adult population of the participants developed the Photovoice publication. We aimed to explore CVD from different generation\'s perspectives using differing tools. The adult population are community members that have kids or grandkids and have to consider them when purchasing, consuming or disposing of food, whereas the youth group were youth aged 18 - 28 that do not have to consider others when purchasing, consuming or disposing of food. If anyone is interested I\'d be keen to write up a post and post or email persons copies of the Photobook.\xa0
\n\nAnd finally @WinniePoncelet, as these methods are very new and often hard to track scientifically I\'ve chosen to look at impact and direct KAP (knowledge, attitude and practice) changes. This is a near impossibility in its own. The way I\'ve sought to study the efficacy of drama as a method was to\xa0study variations of drama presentation including: deep characterization of characters; involving comedy in messages; shorter repetitive chanting or messaging in plays; plays in controlled environments to an invited, anticipating audience; pop up plays in local clinics to unsuspecting audiences. We interviewed persons with a set of questions focused on specific health messaging (i.e. TB and HIV focused) before and after plays.
\n\nWe then interviewed a select number of persons 3-5 months post-performance to gauge retained knowledge. This allowed us insight into which theatrical mechanisms allows message recall. I am yet to publish this paper (if only we had 2 extra hours per day).I aim to take a similar approach with the Street Arts project, although the project adopts an organic, reactive and culturally-/community-sensitive approach and may prove hard to collate. We will not control the public health concern that will be focused on in each country that the project will be installed. Instead, we will allow for this to come directly from the community as we wish to work with issues, define the project and define the artform\xa0in collaboration with community members. I wish to track this process, and treat this project as a prototype phase before scaling the project and inviting others as collaborators/partners in 2018.\xa0
\n\nI hope this provides you with some clarity.
\n\nPlease feel free to contact me on nabroe@gmail.com if needed. If enough persons are interested in an entry focused on Photovoice as a method, I\'d be glad to proceed.\xa0
', u'post_id': 33730, u'date': u'2017-05-09 07:35:44'}, {u'user_id': 3362, u'title': u'Inspiring!', u'comment_id': 33787, u'content': u'Thanks for sharing this @Nabeel_p ! Reading about how you\'re bringing arts, science and communities\xa0together is very inspiring.
\n\nI was recently in contact with a Belgian researcher working on stigma of TB and HIV/AIDS community health workers. As you see behind the links, she made two\xa0mini documentaries about people involved in those communities. She\'s now planning to make another round of videos/photographs.\xa0I find it a great way to communicate science and to highlight the community aspect.
\n\nThe comment of the Senior suffering from diabetes is relevant to another discussion here on the platform. The Open Insulin team\xa0in Belgium is thinking of how to do educational outreach around diabetes, because knowledge on the topic is not very widespread. Here is some more info on Open Insulin\xa0and pinging @NiekD who proposed it and is also a passionate science communicator.
\n\n@Scigrades also opened a call for input to make infographics around insulin/diabetes, to help with education and communication. It would be great to hear your input how he could shape these so that they may be relevant to re use in your context as well.
\n\nPersonally, I\'m\xa0very interested in learning about the topics you will study as a \'researcher\'. How will you be conducting this research?
', u'post_id': 33730, u'date': u'2017-05-07 10:57:58'}, {u'user_id': 3, u'title': u'All clear now.', u'comment_id': 33782, u'content': u"No worries, it's good to be sure anyway, and now that you're part of the community we'll make sure to spread the word and see where support can come from. It sometimes happens that by the time we meet at the event, people know each other and are already working together to progress in their work.
\n\nSo hopefully no one is depending on just one opportunity, but benefits massively from being exposed to a global network.\xa0
", u'post_id': 33730, u'date': u'2017-05-07 11:20:33'}, {u'user_id': 3311, u'title': u'Hi Noemi\n\n@Noemi, Thanks so much for your feedback. ', u'comment_id': 33774, u'content': u'Hi Noemi
\n\n@Noemi, Thanks so much for your feedback. I was a bit uncertain if the informal tone of my writing made my intent clear enough. I am still learning how to navigate the site properly. My apologies. Thanks again for your feedback.\xa0
\n\nI would love to join for the Event in October 2017 and I would like to apply for the Fellowship. I feel being connected to this network would be phenomenal in my own growth and for organic collaborations. I have recently presented the success of a photovoice project at the Wellcome Trust International Engagement Workshop in Kenya 2017. I am actively seeking opportunities to test, collaborate and explore these methods and thematic areas with others.\xa0
\n\nI was looking for partners/collaborators in other countries for this specific project. I have however, decided to scale down the project and treat this as a testing phase with a large research component. In 2018 I\'d like to scale the project to additional countries with collaborations across the countries. Any feedback would be wonderful.\xa0
', u'post_id': 33730, u'date': u'2017-05-07 07:46:19'}, {u'user_id': 3, u'title': u'Public art for Public health', u'comment_id': 33772, u'content': u'Wow @Nabeel_p I really enjoyed reading about your work and the video!
\n\nJust to understand better, would you like to join us for the community festival this October, around health and social care?\xa0
\n\nAs a community manager doing content management\xa0here on edgeryders, I took the liberty to embed your video for easier watch and greater exposure
One for @Finbar247 a great artist in Ireland who has done work on raising awareness around\xa0mental wellbeing! If I can help make other\xa0connections please let me know..\xa0
', u'post_id': 33730, u'date': u'2017-05-05 23:23:59'}, {u'user_id': 3589, u'title': u"Hey folks, \n\nI don't build products, but I'm ", u'comment_id': 37942, u'content': u'Hey folks,
\n\nI don\'t build products, but I\'m totally in support of folks sharing skills with one another. Specialization is useful, but within group settings it can also induce imbalances in power. For this reason, it is important that skills (and therefore also the roles associated with them) are shared and rotated.
\n\nPersonally, I have an interest in consensus-building, facilitation, and conflict resolution. I\'d be happy to share knowledge or resources on the topic of communication strategies and group process. If anyone is interested in this, feel free to get in touch with PMS. powermakesussick@riseup.net! You can also see a bit of a series of skillshares we just organized in Prague at https://pms.hotglue.me/becoming+undiagnosable . Otherwise, hopefully we\'ll be seeing you soon and we\'d be happy to share more on all of the things we were up to.
\n\nKnowledge is for sharing not owning!
\n\n<3
', u'post_id': 103, u'date': u'2017-10-09 12:26:50'}, {u'user_id': 3704, u'title': u'molecular microbiology and project management plus language polishing ', u'comment_id': 35893, u'content': u'molecular microbiology and project management plus language polishing are my key professional skills... (includes teaching and analyses, the bio) But, everyone used to think I could make it in radio or theater.
Thanks so much for sharing your experience with us. It's always so inspiring and encouraging to learn about projects that start from a personal experience / situation.
\n\nI really hope that you can achieve your goals and spread these tools to other places and contexts.
\n\nLooking forward to learning more about this!
", u'post_id': 806, u'date': u'2017-10-09 10:32:00'}, {u'user_id': 3279, u'title': u'Moving Forward', u'comment_id': 21506, u'content': u'Hubotics was presented at the OpenCare Deep Games event at CERN earlier this year. As it\'s early\xa0in the development stage, modifications of design are being achieved to maximize customizability and accessibility to a large community in need. \xa0For the full article here:\xa0 here:\xa0https://goo.gl/vFqiY3
', u'post_id': 806, u'date': u'2017-04-05 12:39:55'}, {u'user_id': 3540, u'title': u'Hello @Rune,\n\nThanks \n\nThe project is not yet open-source, ', u'comment_id': 17989, u'content': u'Hello @Rune,
\n\nThanks
The project is not yet open-source, we are indeed brainstorming on the type of licenses under which to release it.\xa0This will definitely affect the way it is going to be constructed/built/distributed, so unfortunately we have no answers yet on this regard.
\n\nWe have not run any complete clinical assessment but we are planning to start some pilot studies on single users in the near future in order to assess the usability and functionality of the device.
', u'post_id': 806, u'date': u'2017-01-29 23:19:17'}, {u'user_id': 3331, u'title': u'How complex is it', u'comment_id': 15872, u'content': u'Hi,\xa0@luca_randazzo, it looks like a nice project. Is it open-source? How do you see it beeing constructed? Do you have any links to clinical works?
\n\n@Alexander_Shumsky, could it be something for WeHandU?
', u'post_id': 806, u'date': u'2017-01-23 16:26:55'}, {u'user_id': 3433, u'title': u'Thanks @luca_randazzo\n\nI now see the wide range of ', u'comment_id': 13761, u'content': u'Thanks @luca_randazzo
\n\nI now see the wide range of applications for the device. Avoiding undesired consequences of limbs immobilization, post-stroke, torque and mechanics, uses for spinal cord injury and myopathies are all bits of info that show the huge potential value of what you\'re doing. I wish you luck with it and will follow with interest:)
', u'post_id': 806, u'date': u'2017-01-23 14:09:15'}, {u'user_id': 3540, u'title': u'Use-case scenarios', u'comment_id': 13646, u'content': u'Hello @Bernard, thanks for the inputs!
The device has been designed to allow (and/or complement)\xa0simple shoulder and elbow movements (namely: shoulder abduction/adduction, shoulder flexion/extension, elbow\xa0flexion/extension). The main idea behind its development is that of enabling its use directly at people\'s homes, in order to allow intensive sessions directly in activities of daily living.\xa0As such, it could be used in several scenarios, from rehab to assistance. The main differentiator wrt such scenarios would/could (mainly) be the user-interface.
\n\nIn the simplest\xa0case, the device could be programmed (by a physician, physiotherapist etc.) in order to mimic/repeat a predefined set of motions over and over again in order, for example, to avoid the undesired consequences of limbs immobilization (contractures, poor blood circulation etc).
\n\nIn a rehab setting, for example post-stroke, the exoskeleton\'s motions could be derived by decoding user\'s intention via physiological signals (mainly EEG, EMG). In this case the basic idea would be to allow the user to complement or slowly re-gain control over his flaccid/weak arm and discontinue its use once the user does not need it any longer.
\n\nIn an assistive setting, for example post spinal cord injury or in myopathies, the exoskeleton\'s motions could be derived as before or chosen from a simple interface (e.g. smartphone, joysticks etc.) in order to provide assistance-as-needed, whenever the user wears\xa0the device.
\n\nIn a case like the one you\'ve mentioned the device could indeed be used, not to help but rather to (selectively) resist the movements. By customizing some parameters to the user\'s needs/residual abilities, one could enable\xa0specific trainings in order to work on specific ranges of motions, torques, joints/muscles combinations etc. Such parameters/programs could be also updated by a physician, or dynamically (by the device itself) by inferring correlates of muscle-fatigue, achievable range of motions etc.
\n\nIn all the previous scenarios, as specified by @Noemi, data related to the user\'s progress could be collected and analyzed, for the sake of monitoring and improving the therapy itself.
', u'post_id': 806, u'date': u'2017-01-22 17:34:37'}, {u'user_id': 3433, u'title': u'Thanks, @Noemi. Yes, the telemetry would be interesting, ', u'comment_id': 12487, u'content': u'Thanks, @Noemi. Yes, the telemetry would be interesting, and the other conversation is very. Yoga gave me massive authority, I can do things with my left arm that I never thought I\'d be able to:) And I\'ll always be grateful to my surgeon and physioterapists.
', u'post_id': 806, u'date': u'2017-01-21 17:35:25'}, {u'user_id': 3, u'title': u'Telemetry', u'comment_id': 11425, u'content': u'@Bernard , I pinged @hubotics on twitter, hopefully they can respond. I had a quick look at a presentation of theirs (in Italian). It seems it allows more control and a clearer view on the progress you\'re making. And then, the smartness of it - how it captures data and at need can send it to your human therapist for monitoring purposes. I can imagine\xa0self-treatment being empowering and all, but authority in medicine seems pretty big still, as others explained so well in this other conversation.
', u'post_id': 806, u'date': u'2017-01-21 13:41:48'}, {u'user_id': 3433, u'title': u'Very interesting. I had a complicated above elbow ', u'comment_id': 8386, u'content': u"Very interesting. I had a complicated above elbow fracture resulting in 70% muscle wastage, reduced movement of elbow joint and fingers, and removal of the funny bone nerve. I found using plastic bottles filled with water as weights very useful. Easy to change the weight and squeezing the bottle as I lifted was effective at getting the work to where it's needed (and free). In what ways do you think the product in the picture would work better than a plastic bottle? Strenghtening multi-directional movement?
", u'post_id': 806, u'date': u'2017-01-20 12:26:32'}, {u'user_id': 4100, u'title': u'Thank you yannick! Just a few thought:\n\nI like ', u'comment_id': 37930, u'content': u"Thank you yannick! Just a few thought:
\n\nI like the points you raise about the size or scale of living, public and private space, property and community, but we must not forget to think these in relation to our context of global capitalism, and how it claims a monopoly over reality, how to work, live, love, design, relate to each other and so on. Because it penetrates, colonized and commodifies every aspect of our lives, it is not just an economic, but a deeply social and political problem. It is a program/ logic/ system in which (human) life has been made dispensable.
\n\nSo who, living under this oppressive system, has the power to actually shape space? In what ways do these dominant spaces teach us how to move, talk, commune? What do we loose?
\n\nI can't help linking this conversation with the use of chairs in the public and private space.
\n\n\u201cBefore these strange implements of combined architectural/linguistic/physical/political torture, we did not sit, I\u2019m telling you. We had no \u2018seat\u2019, no \u2018site\u2019, no \u2018situation\u2019.\u201d (Jimmie Durham, 1998)
\n\nCu in a few weeks,
Coni
Hey @noemi, will answer the discussion from @woodbine later, in the meantime i send Sigried a message to join \xa0the conversation.\xa0
', u'post_id': 745, u'date': u'2017-06-15 07:50:54'}, {u'user_id': 3, u'title': u'Invite Sigried to OpenVillage?', u'comment_id': 28466, u'content': u'@Yannick pinging you so you don;t miss Woodbine\'s comment above.
\n\nIs there a way to contact Sigried? If she\'s in Brussels, I would love to meet her!
', u'post_id': 745, u'date': u'2017-06-14 15:55:16'}, {u'user_id': 3367, u'title': u'Time and Space', u'comment_id': 27815, u'content': u'Hi,
\n\nThanks so much for the beautiful description. \xa0This is a conversation we\'ve been recently having at Woodbine. \xa0@yannick i think it is really important how you combine the idea of space with the idea of care. \xa0Living in NYC, it is such a struggle to even have the space to think, let alone the time to take care of yourself. \xa0Then with the ever increasing rent, you become more and more attached to "work" or the struggle to compile a bunch of part time jobs together. \xa0Hence the ubiquitious greeting in the city is the "I\'m so busy, just really busy" idea, that once said is usually completely understood to be a chronic state. \xa0But we are in the process of expanding a few hours upstate to create a bridge between the urban and rural environments. \xa0To add our energy and thought to the community upstate but also as a way to connect rurual struggles with the increasing social struggle in the city. \xa0Last week we were all up there together and it was magical to have the time to sit and talk and just be with each other. \xa0In addition, there is a long dirt road that connects all the houses, and there was a sense of community and care that existed that I haven\'t felt in the city. \xa0As one of our comrades said, "we left the capital of the world, and in this little town, our world just got so much bigger." \xa0
\n\nExcited to continue this conversation and see the work you all are doing! \xa0Be well.\xa0
', u'post_id': 745, u'date': u'2017-06-14 12:35:12'}, {u'user_id': 4, u'title': u'The Reef!', u'comment_id': 26957, u'content': u'This looks great to me, actually. Basic, but "self-contained", with the courtyard providing already a layer connecting the different units.
\n\nThe difference in culture between one cit\xe9 and another does not surprise me a little bit. @johncoate has written much about how a bunch of interacting people are turned into a community, and the very many things that could go wrong.\xa0
\n\nThis all ties back into The Reef.
', u'post_id': 745, u'date': u'2017-01-18 06:12:39'}, {u'user_id': 3362, u'title': u'Is there a recipe?', u'comment_id': 26044, u'content': u'My sister lives in classical Cit\xe9 house\xa0in Ghent. Cit\xe9 houses\xa0are small, cheap houses that were built for\xa0the former poor working classes\xa0back in the day. They are mostly\xa0built in a way that allows more interaction between the inhabitants. There is\xa0a shared open space in the middle, which is free of traffic and is usually filled in with things people chose: tables, barbecues, little gardens, ...
\n\nThe cit\xe9 where my sister lives is very lively. There are\xa0a lot of social interactions because people spend a lot of time outside, organise things together, borrow stuff, etc. Everyone knows everyone.
\n\nThen again, this is a lot less the case in the cit\xe9 right next to my sister\'s. People don\'t interact that much and the social ties aren\'t as rich. I\'m not sure what causes this, because the same basic elements are there. Does it come down to the people? What do you think?
\n\nPicture of cit\xe9\xa0housing:
\n\n', u'post_id': 745, u'date': u'2016-09-28 10:23:55'}, {u'user_id': 41, u'title': u'Undisclosed content ', u'comment_id': 24206, u'content': u'Undisclosed content', u'post_id': 745, u'date': u'2016-09-28 10:00:44'}, {u'user_id': 3414, u'title': u'You are on the right pass.', u'comment_id': 20801, u'content': u'It is very important for social, psycological health to change the environment we are living in. Current living environments are a cause for all kinds of problems. So we want to encourage you to design new community and cooprative spaces for living and working.
\n\nBert
', u'post_id': 745, u'date': u'2016-09-27 17:42:56'}, {u'user_id': 4, u'title': u'Ah, kitchens...', u'comment_id': 16858, u'content': u'It is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy_P. , while wondering how to support refugees,\xa0both have found that cooking is fundamental to care (one, two)
\n\n\xa0Even in my own home, at the second iteration we acquired two fully functional kitchens, but we decided to only ever to use one of them, because this leads more naturally to us mingling, chatting, spending time together. I even put music equipment and computers on the work surfaces and the stove of the unused kitchen, to make sure no one is tempted to use it!
In my experience (and sociological studies) i reach out to similar conclusions as yours adding some more
\n\na) training and learning how to take the good out of digital
\n\nb) phisical proximity and real realtionship
\n\nc) digital can be intersting to share learnings and expereine and communicate with somebody far away, to discover new words...similar and intersting to you (this is not facebook, this is something that includes people willing to share interesting relationship adn prctises)
\n\nso shared spaces in addition to private ones (co-living) can be a solution to some of these issues
but you also underline that housing is not a standard, that needs are different so "offer" should be personalised by family/groups by size, lifestile and so on. but you cant expect that normal real estate will ever produce anything like that if not stimulated properly...it sounds less profitable...
All true. What I would also like to explore is to invest in resistance to (non-dramatic) fuck ups rather than rules to do things right. Especially given that we do see people want to learn how to 'run an organisation' and fuck ups are part of the learning curve.
\n\nWhen I look at our own history, we have had some room for failure (several on my end) since we are classified as a small nonprofit and thus less strictly regulated. That's changing though, but with it the core group gains experience to teach new people and avoid them having to fuck things up and showing them how to be efficient. So it's about learning, similar to how you rotate(d) admin duties in Edgeryders?
", u'post_id': 36576, u'date': u'2017-10-09 06:48:16'}, {u'user_id': 4, u'title': u'Closely related, not the same. Meaning: once you ', u'comment_id': 37463, u'content': u'Closely related, not the same. Meaning: once you have the money, you might think your troubles are over, and now it\'s going to be meaningful work all the way down, but... no.
We have done the same so far \u2013 and I agree. But:
\n\nThey aren't or they shouldn't be? I see it as a spectrum that goes from a zero ratio 'actual work' over 'admin' to an infinitely high ratio. Admin and funding are not the same thing, but in the low end of the spectrum, they become closely related enough to consider them together when it comes to financial decision making, in my opinion. That's where I would place (certain) big funded projects.
\n\nIs that where 50% of the budget goes into 'project management'? 75%? 25%? I don't know. I do know that I will be extra critical of a situation with 75% budget for overhead. This as part of a more intuitive thought process that goes into our decisions about our business models and where we should put our energy/time/resources to develop or exploit offerings as a collective. Not paying for overhead jobs as a default keeps us light and has felt like a good guiding principle so far.
", u'post_id': 36576, u'date': u'2017-10-04 14:07:24'}, {u'user_id': 4, u'title': u'Edge of funding and edge of admin are ', u'comment_id': 37446, u'content': u'Edge of funding and edge of admin are not the same thing, though they are related. We (Edgeryders) are really struggling with the latter now. Part of it is dealing with the Brexit mess, and I am telling myself it is a one off, and it will pass. And Brexit is a one off, and we will shut down the old company and only run one instead of two. But I wonder.
', u'post_id': 36576, u'date': u'2017-10-04 09:00:26'}, {u'user_id': 3362, u'title': u'Happy to see you here @cindys ! Sorry ', u'comment_id': 37141, u'content': u'Happy to see you here @cindys ! Sorry for the late reply as I was travelling and conferencing abroad.
\n\nPeople in the biohacker community have criticized the DITOs project for not being very participatory towards the community. Mainly involving them through asking for free work or using their work without proper attribution. A big discussion around fair pay / fair play ensued and continued at the Global Community Bio Summit last week.
\n\nAmong other things, this seems to be tied to the bureaucratic nature of partners participating in large publicly funded projects. Money is going into managing and reporting on projects, rather than doing actual high impact work. Not sure if this is the case for DITOs, but surely you\'ve experienced it at some point.
\n\nI do a lot of work around science, citizen engagement and education at a grassroots level. We do cool stuff and involve loads of people without any budget. A big contrast to certain several hundred thousand euro projects of which the output is meager in terms of quality and citizen involvement, as well as being dead in the water when funding ends. Browsing through past EU project websites often feels like walking through a graveyard, "Fun while it lasted" on the tombstones. On to the next funding round.
\n\nSpeaking to other community labs all over the world last week at the Bio Summit, I have the impression it is seeping into their organisations as well. I hear the old, establish labs talk about their \'executive directors\' and other roles that deal with (or add?) overhead and generally lower the cool stuff:cost ratio. Unavoidable when you grow in size, but definitely to be improved upon.
\n\nNow that we are going through a growth phase with our own organisations, we absolutely want to maintain our cost efficiency. And importantly, fairly pay the people doing the actual work firstly. I\'d like to explore: how do we ensure this through organisation infrastructures?
\n\nIt further ties into other discussions we are having at the Festival, such as our panel The Edge of Funding.
', u'post_id': 36576, u'date': u'2017-09-28 13:06:00'}, {u'user_id': 3729, u'title': u'@Noemi : I m busy right now to ', u'comment_id': 36954, u'content': u'@Noemi : I m busy right now to prepare visa papers , just got my master program enrollment document then I will connect to nadia or some thing for the invitation and some needed data , I\'m really exited to be in Brussels festival ..
', u'post_id': 36576, u'date': u'2017-09-25 05:57:42'}, {u'user_id': 3, u'title': u'@m_tantawy if you are coming to Brussels be ', u'comment_id': 36931, u'content': u'@m_tantawy if you are coming to Brussels be sure to join the panel on infrastructures of collaboration of which Cindy is a part of. Cindy: with Mohamed we were discussing ways in which his community called Ma\'arefa in Egypt - a flatarchy he calls it, needs to become an institute to formalise support for the hard working coordinators!. Perhaps you have advice? Here is the story:
\n
Hi @cindys - I\'m curious, ahead of your panel, has any of the groups or projects you are involved sustainable in so far as the work pays for itself and covers the time if those doing it? Especially the Public Lab from what I\'ve seen is network based, which means, if it\'s anything like edgeryders, that most of the collaboration happens because people are highly mission driven. But how is the coordination work sustainable from a point of view of network care?
\n\nFeel free to also throw back questions, if you\'ve read @gehan\' s email introducing the panel you know that it will be focused on people answering each other..
', u'post_id': 36576, u'date': u'2017-09-24 16:00:23'}, {u'user_id': 3958, u'title': u'Hello Alberto! Thanks for your comment! I look ', u'comment_id': 36646, u'content': u"Hello Alberto! Thanks for your comment! I look forward to a more in depth conversation about these issues you mention, which are also of great interest to us. Part of our evaluation work is to 'make visible' a lot of these tensions and also the taken-for-granted and 'behind the scenes' work that goes into EU project activities, which cannot be accounted for in the traditional forms that have to be submitted through the application process. Part of 'playing the game' in the application and selection process is about 'disguising' some of this work, which we believe, reproduces (and sometimes validates) this invisibility - e.g. the extra in-kind work by event facilitators and external help that makes events great but becomes 'labour of love' and can then lead to burn out.
", u'post_id': 36576, u'date': u'2017-09-19 20:45:57'}, {u'user_id': 4, u'title': u'Hello and welcome @cindys. I am looking forward ', u'comment_id': 36642, u'content': u'Hello and welcome @cindys. I am looking forward to your panel and to meeting you personally. Like most people in Edgeryders, I do dream of a broader autonomy; and I am also an occasional participant in grassroots... well, I would not call it science exactly, maybe data science initiatives. Since you like Horizon 2020: my latest project, done with my brothers- and sister-in-arms at Spaghetti Open Data, is a network analysis of Horizon 2020 consortia, looking for exclusionary dynamics in partnership formation. Hope to learn more about your work.
\n\n', u'post_id': 36576, u'date': u'2017-09-19 20:02:00'}, {u'user_id': 3595, u'title': u'Cool project! Did you talk with a chef ', u'comment_id': 37743, u'content': u"Cool project! Did you talk with a chef about the menus? I'm wondering how to develop menus with all the possible food allergy combinations, and at the same time how to avoid cross-contamination in the kitchen.
", u'post_id': 33754, u'date': u'2017-10-06 16:25:51'}, {u'user_id': 3597, u'title': u'Thank you @woodbinehealth!\n\nUp until now we have checked ', u'comment_id': 33835, u'content': u'Thank you @woodbinehealth!
\n\nUp until now we have checked the awareness of restaurant owner about food allergy, without offering them any product.
\n\nWe are trying to make people working into this field more sensible, and if this will increase their business, so much the better. Our work Will be focused only on allergens, not on menu dishes, independently from diet.
', u'post_id': 33754, u'date': u'2017-07-31 08:08:45'}, {u'user_id': 3367, u'title': u'Great idea\n\nHey, thanks for the post, seems like ', u'comment_id': 33809, u'content': u'Great idea
\n\nHey, thanks for the post, seems like a great idea! Saw your other post about implementation, wondering if restaurants see a benefit or is it viewed as too much of a cost? Wondering if having the kit makes it a more marketable restaurant, similar to how "vegan" or "gluten-free" restaurants have become niche places. Also would you include dietary choices such as vegan/vegetarian/gluten free type stuff? Thanks for all the work!
', u'post_id': 33754, u'date': u'2017-07-19 13:40:40'}, {u'user_id': 3597, u'title': u'Thank you Winnie!\n\nDuring the two MIR weeks, thanks ', u'comment_id': 33801, u'content': u'Thank you Winnie!
\n\nDuring the two MIR weeks, thanks to an exchange of views with @Costantino, we have decided to develop a visual code: using this code the restaurant staff will be able to recognize people with food allergy sitting on table, and to operate with carefulness.
\n\nDevices that we\u2019ll develop for restaurant staff will be integrated with their in use instruments, without adding something new.
\n\nConsidering this, our worry about the reception of our product from restaurant owners is unfounded: will be their own choice the acceptance and compliance, through our solution.
\n\nStay tuned! Into the next days we\u2019ll publish updates.
', u'post_id': 33754, u'date': u'2017-07-19 16:15:59'}, {u'user_id': 3362, u'title': u'Implementing\n\nHi @litzazi, thanks for posting your thought process ', u'comment_id': 33792, u'content': u'Implementing
\n\nHi @litzazi, thanks for posting your thought process behind making this a reality. Restaurants are sadly rarely considerate of eating habits & requirements outside of the \'norm\', great that you\'re developing a solution.
\n\nYou indicated in one of your earlier posts that restaurateurs didn\'t want your product. Has this changed, and if so: how? Furthermore I\'m curious for your strategy to implement it.
', u'post_id': 33754, u'date': u'2017-07-19 06:55:49'}, {u'user_id': 3597, u'title': u'Thank you Noemi for your post.\n\nActually we are ', u'comment_id': 33779, u'content': u'Thank you Noemi for your post.
\n\nActually we are focusing on the kit for restaurant\u200b owners (Guidelines for the menu, Table allergies indicator, A smart guide for coaching the restaurant staff, Personalized order book, Restaurant\u2019s business cards for customers who do not know \u201cAllego K\xec\u201d project, Food safety manual), and We have temporary left out the idea of the web app for restaurant research.
\n\nWe believe that restaurant owners could be very important to publicize and let people know the Allergo K\xec system.
\n\nInto the next days we\u2019ll publish the progress of our researches, and above all, the useful informations collected during the project presentation at WeMake.
', u'post_id': 33754, u'date': u'2017-07-19 16:12:35'}, {u'user_id': 3, u'title': u'Small clarification\n\nHey @litzazi thanks a ton for documenting ', u'comment_id': 33767, u'content': u'Small clarification
\n\nHey @litzazi thanks a ton for documenting your process, it seems like you guys will make lives easier for people everywhere!
\n\nI dont have allergies myself, but I have frineds who do. Many times having to read the long indexes of allergenic ingredients and what each food in a restaurant contains is painful - basically getting hungry and hoping the list holds true for what you are about to order. That is, if the restaurant menu has the list. Most dont.
\n\nQuestion: I\'m not sure how advanced you are in your design, but are the AllergoKit mobile app, the kit for the restaurant and the physical device for customers all in consideration for you to build? Or do you settle for just one of these which is most useful and feasible?
\n\nThanks again!
', u'post_id': 33754, u'date': u'2017-07-18 14:05:26'}, {u'user_id': 3686, u'title': u'Here is a mixtape. .A selection of nine ', u'comment_id': 37643, u'content': u'Here is a mixtape. .A selection of nine podcasts. I\'ll be changing and updating this as times goes on. The woodbine podcast is in there. I\'ll be sharing this with different groups of people and this is part of resources that ill be updating and share with people at front lines and taking feedback.
', u'post_id': 35132, u'date': u'2017-10-05 19:00:35'}, {u'user_id': 3613, u'title': u'Appreciate these thoughts Georgie. Looking forward to learning ', u'comment_id': 36312, u'content': u'Appreciate these thoughts Georgie. Looking forward to learning from your experience in October.
', u'post_id': 35132, u'date': u'2017-09-15 08:09:22'}, {u'user_id': 3756, u'title': u"Guys can't wait for the weekend. It's gonna ", u'comment_id': 36306, u'content': u'Guys can\'t wait for the weekend. It\'s gonna be so full of interesting discussion
I agree with what you say Michael the world is piling on top of its self with "meeta- disaster." How much are we contributing to that? I would say a significant amount unfortunately, on so many levels! The global inequality we see exaggerates the effects of environmental disasters or changes. Haiti being a prime example of an impoverish nation hit again and torn apart by the destruction and devastation of the forces of nature!
But out of such disaster can come hope, imagination and creativity, resourcefulness and solidarity. Examples, demonstrated in \'black flags and windmills\', of the grassroots movement that supported locals in the new orleans flooding. We might not see it in all streams of society but it will connect us, as an undercurrent, an alternative.
Mega-disasters/ meta-disasters and the mass movements they cause.
\n\nI heard someone on the radio say that climate change was a compound policy failure.
That got me thinking. That\'s true but it doesn\'t explain the disasters in the gulf.
Whats going on with harvey and Irma?
\n\nWe can\'t just blame climate change.This distracts from individual and collective responsibility. That many of those doing life saving work are also subject to budget cuts. The ability to withstand has also been undermined. The draining of wetlands and a greater concrete surface area mean that cities flood more easily and more severely. Not to mention that poverty is one of the biggest things that traps people.
\n\nso people call these things perfect storms that one time everything comes together just right for it all to go horribly wrong. except This will keep on happening. Mark my words this once in 500 year events are not that. We are seeing pile ups. poverty +racism+austerity+wetland destruction+climate change+hurricanes+ floods = a mega-disaster. a disaster made up of lots of little disasters. a meta-disaster.
\n\nOn the other side of the world a third of Bangladesh is underwater while people still flee there. Relatively safe compared to the strife of Burma.
\n\nThe disasters in the gulf coast are also a cause for hope. The innovation we have seen will outlast the flood waters . curious questions linger about what can be learned
\n\nThe Cajun navy use zello. A walkie talkie app.
\n\nThe florida madjority has 4 community hubs to coordinate responses.
\n\nAnother gulf is possible is the coaltion in houston. allowing groups to specialized as well as collaborate.
', u'post_id': 35132, u'date': u'2017-09-12 16:26:23'}, {u'user_id': 3686, u'title': u"I'll think more about a reading list.\n\nwelfare states ", u'comment_id': 35565, u'content': u'I\'ll think more about a reading list.
\n\nwelfare states put more people through the education required for disaster response nursing civil engineering etc.
A strong case can be made for the civil defense model that arose in the cold war. it saved millions and eradicated small pox but relied on lots of money from US/USSR.
With austerity talk is more about community resilience and grassroots responses in a lot of Europe. i think the marginal will often be forgotten. Evolving challenges.
In houston the Cajuan navy would an example of an emergency mutual aid that comes out of the lack of a state evacuation. some state assistance for vehicle rental and or special insurance set up would act to lubricate those efforts and be pretty cheap in the bigger scheme of things.
\n\nthis is a good article on Houston.
', u'post_id': 35132, u'date': u'2017-09-05 19:23:01'}, {u'user_id': 3, u'title': u"Oh this is so insightful.. I'm grateful to ", u'comment_id': 35526, u'content': u'Oh this is so insightful.. I\'m grateful to @michael_dunn and @gehan for producing it.The money quote for me is
\n\n\n\nYou mentioned elsewhere that welfare states can contribute to disaster prevention, but I would have a hard time understanding how capacities to respond, plan, prevent can be aided even within a welfare state.. a sort of diy welfare state which is more agile to piggyback on efforts of people like you maybe..?? It seems like many things should be in place for this up scaling, including a generational change.
\n\nIf there\'s readings which you would like us to go through ahead of your session, please send them over, will be happy to encourage others to take the time.
', u'post_id': 35132, u'date': u'2017-09-05 15:08:43'}, {u'user_id': 3804, u'title': u"Wow... pretty amazing progression. I'm looking forward to ", u'comment_id': 35396, u'content': u'Wow... pretty amazing progression. I\'m looking forward to hearing more. The Crisis abroad will surely come home one day, and all the more reason to start anywhere with trying to implement practical steps. #Infrastructure!! Gonna read more about the Golden Trailer now.
', u'post_id': 35132, u'date': u'2017-09-05 01:47:27'}, {u'user_id': 3367, u'title': u'@tneh Welcome to the platform! Really excited ', u'comment_id': 37629, u'content': u'@tneh Welcome to the platform! Really excited to have you come to the festival. Some of us have been following the work of the Canaries in NYC and we have resonated with the discourse around "sick time". We find the tension between what our natures demand and capitalism expects to be an area to delve into the topics of care and care as a revolutionary force. Looking forward to connecting with you!
', u'post_id': 37342, u'date': u'2017-10-05 16:33:50'}, {u'user_id': 3, u'title': u'Hi @tneh and welcome to edgeryders. Thanks for ', u'comment_id': 37620, u'content': u'Hi @tneh and welcome to edgeryders. Thanks for formatting your text, it\'s easier to read now without the screencapture/ picture in it. Yours seems like a culturally sophisticated way of ensuring some deeper awareness and peer support of which others have been talking about around here. I guess I am having a little problems reading it due to some new terminology - \'undercommons"?
\n\nOtherwise, I think @amelia and @kate_g would really enjoy your work.
\n\nAmelia wrote a beautiful post a few months back about invisible illnesses..
\n\nLooking forward to meet you in person. We\'ve included you in the list of participants and the email which Natalia sent earlier today.
', u'post_id': 37342, u'date': u'2017-10-05 14:55:55'}, {u'user_id': 4078, u'title': u'Here are the links to some Canaries materials ', u'comment_id': 37599, u'content': u'Here are the links to some Canaries materials mentioned (As a new user I could only link 2 things!)
\n\nThe Canaries support group website and Notes for the Waiting Room publication.
', u'post_id': 37342, u'date': u'2017-10-05 13:17:47'}, {u'user_id': 3821, u'title': u'AuxiLife the dream start to be real\n\n ', u'comment_id': 37378, u'content': u'AuxiLife the dream start to be real
\n\n
thank you so much @nadia for your comment.
', u'post_id': 34574, u'date': u'2017-08-26 13:20:30'}, {u'user_id': 3821, u'title': u'hey @hazem.first i want to thank you ', u'comment_id': 34794, u'content': u'hey @hazem.
first i want to thank you for your comment and your support.
actually, the AuxiLife project is very new, i start developping it few weeks ago, after a long time of research and planning, and i think it need more time to be published and used.
thank you for your advices, i\'ll try to use them to improve my project.
hi Aymen,
\n\nI think @costantino and some of the people in the community around WeMake, their makerspace in Milan might be of interest. They\'ve been doing very interesting work as part of the OpenCare research project.
\n\nMore generally, have a look at the stories from other care-related projects, and feel free to drop comments with questions or throughtful reflections - this is a space for us to learn together.
', u'post_id': 34574, u'date': u'2017-08-24 13:32:29'}, {u'user_id': 1935, u'title': u'hey @aymen.masmoudi welcome on board.what you are doing ', u'comment_id': 34622, u'content': u'hey @aymen.masmoudi welcome on board.
what you are doing is very interesting and should fulfill actual needs. not only in Tunisia but in different parts of the world
but how developed AuxiLife now, is it ready to be launched or not ? and will you reach out to the targeted community specially "the personal care assistants ".
you might have noticed that we are having a big community of opencarers and invisting a lot of time in the opencare project, may be this could be a start ( may be @noemi @natalia_skoczylas @alberto know more about how to integrate with the potential peers in the opencare community )
', u'post_id': 34574, u'date': u'2017-08-23 10:52:26'}, {u'user_id': 4050, u'title': u'Hi Alberto,\n\nThanks for the feedback and the tip ', u'comment_id': 37346, u'content': u'Hi Alberto,
\n\nThanks for the feedback and the tip you pointed out.
I will do my utmost in order to try make it to the OPenCare village.
Hope to see you there!
', u'post_id': 35807, u'date': u'2017-10-02 17:07:11'}, {u'user_id': 4, u'title': u'@Stef, I just wanted to flag how nice ', u'comment_id': 37261, u'content': u'@Stef, I just wanted to flag how nice is to finally read a post from you (and what post!). I was really curious to find out what you really think about OpenCare. Now I know a bit more:
\n\n\n\nSuper-interesting.
\n\nTwo things:
\n\nTwo quick thoughts.
\n\n1 - In the USA, the "pursuit of happiness" does not have to include caring for or helping anyone besides yourself. And many people do not wish to have any of their resources going to anyone other than their family or who they specifically designate. The issue of whether or not we are "our brother\'s keeper" is a debate with no end here in the land of the free, where you are free to succeed and free to fail. And if you do fail, someone may or may not lend you a hand. I, who have paid hundreds of thousands of dollars in taxes over the course of my life, want that money to help people with education, health care, food, shelter, etc. Not bombs, war and destruction. But a lot of people here feel the opposite. And right now they pretty much run the government.
\n\n2 - Once I heard R. Buckminister Fuller give a lecture where, at one point, he said "if you really want to help the whole, bring up the bottom."
', u'post_id': 35807, u'date': u'2017-09-29 17:07:33'}, {u'user_id': 3367, u'title': u'Thanks for the kind words @alberto. Likewise, ', u'comment_id': 37065, u'content': u'Thanks for the kind words @alberto. Likewise, really excited to meet everyone and discuss possibilities for a new world.
\n\nSo funny you bring that book up. One of our comrades wrote a review of it and it has really been shaping my views on what we need to do.
\n\nBe well and see you in a few weeks.
', u'post_id': 35807, u'date': u'2017-09-27 12:57:11'}, {u'user_id': 4050, u'title': u'Great piece of refection Francis!I believe all of ', u'comment_id': 37004, u'content': u'Great piece of refection Francis!
I believe all of mankind with the ability to reason often has the same contemplations\u2026\u2026how can we make a difference if the majority is thinking in extremes and in its own benefits. Capitalism is an example how a relative good system (\u201cthe best of the worse\u201d), can be misused due to the nature of mankind, greed in the example of capitalism. How can we close the gap between the ultimate rich and the ultimate poor in the world for instance, if greed keeps existing and the world doesn\u2019t wake up from its own nightmare?
Three weeks ago, I travelled through the US for my work. I was stunned by the homeless I saw, the people with three jobs, just to hold on to their houses. I got sick at the idea that people in that same country don\u2019t know what to do with their money and want to get rid of that one thing that would at least make an effort to bring healthcare to the ones that need it and cannot afford it\u2026and they call it a civilized country\u2026 You ask yourself the question on care: \u201c how can we provide care in the broadest sense when people drive cars into crowds\u201d? In my believe, you are part of the answer\u2026trying to figure out how to make a better world while still trying to pay of your study loans (opposed by you through capitalism), contributing to OpenCare project, figuring out how to reorganize care so it can affect more people, not only the rich. Change starts at the individual, individuals like you from where we hope it spreads like an oil spot at sea\u2026.I realize the irony in this phrase \u2026
People in general care first about themselves and their closed environments, hopefully to pay attention to the rest of the world afterwards in order to make things better for everyone. Take myself as an example\u2026.This is the first time you see me react to a post\u2026.this is because I am on vacation, having the time to read stuff that is on the internet from my network. I spend my days working for a big capitalist company, making a decent living. The industry I am working for makes an awful lot of money from a primary need, I know this and try to compensate through ScimPulse, but in essence I am just \u201c as bad\u201d as everybody else but with the effort of trying to mitigate. First me and my surroundings, then the rest of the world\u2026..it\u2019s a mentality
It is just this that is also drawing my attention from this post and you briefly touched it\u2026\u2026.we seem to care only for the \u201cWestern\u201d part of this world. We see I don\u2019t know how much footage about rampages in US and Europe\u2026even some on Mexico but not nearly as much as from the US or other rich Western countries\u2026..close to home..anyway in the same cluster of welfare. It is not a contest but the impact and casualties in other parts of the world, caused by same or different catastrophes are much, much worse.
i.e. Bangladesh flooding\u2019s, earth slides in China, Inida, parts of south America\u2019s, starvation in Africa, mass killings in Africa and Eastern part of the world, political repression and imprisonment even in Turkey (where we don\u2019t have the guts to stand up due to political/economical interests), the remainders/consequences of Arabic spring (and I believe this is also part of what you try to point out Faruqh, when you argue oppose\u2026.will come back to this later\u200b). Like you mentioned, those which are impacted the most, are those from we western capitalist greedy society is taken the most advantage
With Open Care I believe we try to touch the lives of many by trying to organize care in such a way that more will benefit and it stays sustainable towards the future\u2026\u2026We try to make better and preserve what we have\u2026.what about the people deprived of care? I hope we also can have the discussion on how we can get care to those which are deprived of what we have\u2026we seem to care first of our own ecosystem\u2026\u2026it\u2019s a mentality
Perhaps our first point of attention should be to mitigate the differences in the world instead of making better what we have\u2026..? I know, this is a very blunt statement, but consider, for a large part we harvest the consequences of \u201cus\u201d exploiting those countries which suffer the most now\u2026\u2026
Perhaps what we learn in this project could also be of benefit when we try to solve these kind of utterly questions\u2026\u2026.There must be a correlation between prosperity and individualism (read, not having community care)\u2026Take Europe for example, starting at the South of Europe, where there is a lot more of community care, traveling to the North and take for instance The Netherlands, my home country. No way, I am going to take care of my parents in my home. Not because I don\u2019t love them\u2026I can\u2019t\u2026..I am too busy to take care of my own closed environment first (my household), no room for my parents (or any other family members). This sounds harsh, and I realize it when I write them down, but it is reality. I am part of an individualist society, where I worry about my next career move, my next holiday, my next house I will buy\u2026.It is not a free choice (now I hear you think, you always have a choice\u2026that is where you are wrong..you don\u2019t..if you are not with this mentality, you are against and when you are against, you are out and you will not have the ability to, for instance, influence policy makers). We are all doing it, we are all living in this society that \u201c forces\u201d us into a materialistic approach towards life\u2026\u2026wanting more and more and abusing capitalism\u2026.it\u2019s a mentality
\u201c How can we provide care in the broadest sense, if we are not willing to stribe towards equality\u201d? \u201cHow can we provide care in the broadest sense, when we are not able to change the individualist mentality we have in a large part of the western world\u201d? I mean, US is often seen as \u201c the leader of the free world\u201d , home of the brave, land of opportunities\u2026..yes, if you are born in the right circumstances (color, social class)\u2026.and it is this country that is trying it utmost to deprive the needed of care..
The challenges we face in care are utterly complex and not to be captured/solved in a project. They vary from indifference to ignorance\u2026\u2026from protectionism to fear. How do we change mentality in this world so we will not only improve the care system we have, but utterly we can have the entire world have a care system as good as ours\u2026and at the same time keep it affordable through a different way of caring?
First thing we should do is not neglecting other parts of the world where people suffer from the same disasters the western world is facing, but only the essential impact to lives is exponentially bigger. Second thing we should do is asking ourselves how we can change individualistic mindsets and disconnect it of prosperity and wealth. \u201cWellbeing\u201d , not \u201cwealth\u201d should be the way that we should look at life\u2026easier said than done hey\u2026 I just claimed I will never take my parents into my home, because it doesn\u2019t fit my dynamic life that brings me my wealth\u2026I am doing the same, how can I make a difference in changing this mentality then? Tough questions\u2026philosophical if you like and I don\u2019t have an answer, only the struggle\u2026perhaps awareness\u2026don\u2019t hide the misery in the \u201c third\u201d world and focus on the western part\u2026
I did promise to come back to the point that @faruqh was trying to make\u2026\u2026correct me if I am wrong Faruqh but what I read from your comment is that one cannot oppose something to another group and expect them to \u201c live it\u201d\u2026..you cannot oppose democracy to the countries which don\u2019t have it (in our eyes)\u2026it is the arrogance of the western world that has caused total anarchy in the countries we\u201d tried to help\u201d\u2026..we should reason, educate, convince, teach\u2026.instead of oppose\u2026if that is what you meant, I totally agree.
I hope I can \u201cfind the time somewhere\u201d () to visit you guys at OpenVillage and discuss some more on this because I truly believe these are essential things to worry about when we think of sustainability and caring. If not, I am also convinced that when we still have people that care and think on these essential topics, in the end common sense will prevail and we (society) will get together in the sake of mankind.
@woodbinehealth there is a sentence I quoted in the newsletter that says OpenCare festival... It\'s not OpenCare but OpenVillage festival - I will edit it, if you disagree, please edit back
The USA - Land of the Free. Freedom to succeed, freedom to fail.
', u'post_id': 35807, u'date': u'2017-09-24 00:26:02'}, {u'user_id': 3362, u'title': u'Thanks for this Frank. Travelling in the US ', u'comment_id': 36705, u'content': u'Thanks for this Frank. Travelling in the US has left similar impressions on me. There is so much normalized suffering in plain sight, even without the bigger and less visible (to most) horrors. Glad to have enjoyed the atmosphere of counter movements in SF and Oakland in the same breath, it gives a little hope.
', u'post_id': 35807, u'date': u'2017-09-20 17:12:08'}, {u'user_id': 3279, u'title': u"Great post-Frank @woodbinehealth With all that's going ", u'comment_id': 36667, u'content': u'Great post-Frank @woodbinehealth With all that\'s going on in the world, it\'s hard to think, much less imagine creating a new world. But, we can, we must. We have the reason, vision, power, and technology to do so. Just have to bring it all together in a cohesive global movement, where people can change the world locally and impact globally. Openvillage is definitely a start in the right direction. Keeps hope alive. Often hope gets a bad rap. For some, it conjures images of naivety, but as defined by psychologists it matters a lot.
', u'post_id': 35807, u'date': u'2017-09-20 09:43:39'}, {u'user_id': 4, u'title': u'I may be wrong here, @faruqh, I am ', u'comment_id': 36559, u'content': u'I may be wrong here, @faruqh, I am not sure I understand you 100%. But, in general, it seems to me that there is no one-to-one correspondence between a space and a way of life. I live in Brussels, where you have about one third Belgians, one third European migrants, such as myself, and one-third non-European migrants, mostly from Morocco, Turkey and Congo (https://en.wikipedia.org/wiki/Brussels#Nationalities). If any one group pushes too hard to enforce its way of life, the city will become unlivable. And then, it\'s not like there is one way of life, even within the same group. Italians and Danes are both Europeans, but they do not necessarily live in the same way. Belgians are themselves split across the Wallonian/Flemish linguistic and cultural line. And Moroccans and Congolese... you get the idea.
\n\nLow-diversity neighborhoods such as Molenbeek (where it can happen to a random woman to be scolded because no hijab) are seen as brewing trouble. I do not know enough to take a position myself, but this post made the rounds in late 2015. It made me think a lot.
\n\nAdditionally, low local diversity does not mean lack of oppression. In Tunisia after the revolution, for example, there was a big political fight on the political rights of women. Both the progressive and the conservative religious side of the argument claimed to speak in the name of the same Arab and Muslim tradition. The culture was homogenous, but at least some people did not feel they were getting a completely fair deal from the people sharing their same culture.
\n\nThe usual way to get out of this complexity is, in the West, human rights. This is a legal culture that says: the rights of individuals supersede the rights of groups. It\'s historically kind of new \u2013 individuals have been seen as expendable for most of human history \u2013 and not everybody buys into it, not even in Europe (its birthplace).
\n\nIf I am completely off the mark, just ignore me
The middle ground is mutual respect. It is like a line in the sand. To cross on either side is to jeopardize the stability of that group. Robert Frost illustrated this concept in the Mending Wall. \u2018Good fences make good neighbors.'
\n\nIn our efforts to embrace diversification we have not paid proper heed to those who would like to embrace their individuality. integration and diversity are great, but as a construct, they should not be used to reduce the individuality of any group. If a group chooses to insulate themselves from diversity then it should be their choice. It should also be respected by others without considering the individuals to be racists. Diverse lifestyles should be respected on par with segregated lifestyles by honoring the choices of the people who live those lives. In the end everyone wants what they feel deep in their hearts is best for them and their families.
\n\nThe problem comes with oppression. When any group of people try to force their ideals on another person and desecrate their life choices. Whether it be a feminist trying to destroy the hijab, a white supremacist trying to impose a false superiority on other races, or a liberal and diverse group trying to take over a town founded and cultivated by white separatists, it is all wrong. And when someone tries to destroy your way of life, directly tries to destroy it, then you should fight back. By any means necessary.
\n\nWhere this line gets gray is when one community has profound dependencies on another. Example, when an insulated white group has benefited from excessive amounts of diverse labor to build their ideal community. Well, there is a price to be paid beyond simple salary. Now there is a since of entitlement that mus be compensated. If it is ignored then it will lead to revolt.
\n\nEvery people should be deeply involved in the process of securing a successful future for their people. But, when another set of people use the entirety of your resources in order to propagate the future of their people, there becomes a feeling that the indentured party should have proper access to what they built. Whereas those who it was built for claim exclusive ownership. This is the case in many urban US cities. This is a platform for conflict.
\n\nIn the end the problem only exist in shared spaces. Typically urban, these spaces will always be habitats of co-existence and should be left to those with that desire. For those who seek separation in an urban space then the law should restrict their engagements in order to reduce the possibility of violent action. When the law fails to do so then the attacked reserves the right to stop the aggressor by any means necessary.
", u'post_id': 35807, u'date': u'2017-09-18 13:44:03'}, {u'user_id': 3, u'title': u'Thanks for this Frank @woodbinehealth , it so ', u'comment_id': 36528, u'content': u'Thanks for this Frank @woodbinehealth , it so clearly resonates. Our friends and youth in Egypt declare the same propensity for depression - understandably, in some other cultural code. I used to think there is some gratefulness to be practiced due to our ability to organise ourselves in the west. Not anymore, as we are all one.
\n\nYou and your comrades are paying your dues for sure, and you found each other. How can the rest of us help in making it easier to find each other? Learning helps, but now it seems we need more of us in the same place and a lower cost of even learning. Speeding up in the trenches, together?
Is woodbine involved in any other international effort, outside of OpenCare and our festival?
Interesting stance, @faruqh. How would you advise others to push back? Is there a middle ground between just sucking it up and all-out war?
', u'post_id': 35807, u'date': u'2017-09-13 14:58:21'}, {u'user_id': 3686, u'title': u'many of us on here have experienced Casandra ', u'comment_id': 36124, u'content': u'many of us on here have experienced Casandra syndrome. All to able to predict our apocalypse but unable to change it. The real pointlessness of those words i told you so.
\n\nbut as the apocalyptic plays out it always feels stranger when it happens. life is always richer then predictions. Obscure feelings.
\n\nNo matter how bad things were in the barracks refugee camp in Serbia everyday i found myself thinking well at least its sunny. Staying in a hut in the woods in Scotland through the winter left me feeling pleasantly surprised that I felt physically comfortable.
\n\nhow do we stay well in a sick sea? and when we do escape this lingering sense that we should be suffering with the many other?
\n\nwe need new stories to face new challenges. Those 2 core issues are emotions and logistics.
frameworks for resilience in a darker age. dark optimism appeals as a phrase. to increase motivation and decrease expectation because in a more unstable world we get less of what we expect.
we are not the first to think these thoughts or have these feelings. There was a slogan in the Warsaw ghetto uprising "Someone has got to live". it sounds bleak and yet it was perfect. a defiant last stand before people got sent off to the concentration camps. it was a massacre but some people escaped. it stands a flickering and dim light that stands out clearly amid horrendous darkness.
\n\nIn the words of Paulo Feire
"with one eye i look into the light,
with on eye i look into the darkness,
with one foot in the fairy tale and
with one foot in the abyss."
Thanks for these reflections. Troubling times - depression surely is a natural response, denial and delusion the only antidotes. Reminds me of the Cornell West quote "I cannot be an optimist, but I am a prisoner of hope" - which seems to capture perfectly the tension that seems to characterise our times - between realism and never letting go of \'some possible other\'.
', u'post_id': 35807, u'date': u'2017-09-12 20:45:39'}, {u'user_id': 249, u'title': u"Bring it.Peace first - But don't push. Some ", u'comment_id': 36015, u'content': u"Bring it.Peace first - But don't push. Some of us peaceful guys push back - very hard.
", u'post_id': 35807, u'date': u'2017-09-11 22:46:00'}, {u'user_id': 2915, u'title': u'\n\nwoodbinehealth:\nthe progressives that are destroying our cultural sense ', u'comment_id': 35995, u'content': u'\n\nCan you say more about this - about why you think this is the case? I\'m not sure I understand what you mean.
', u'post_id': 35807, u'date': u'2017-09-11 19:01:12'}, {u'user_id': 3757, u'title': u' workshop of economic science fiction ? do ', u'comment_id': 35969, u'content': u' workshop of economic science fiction ? do that and I ll bring you Cory and bruce...perhaps they could reach their friends too...haha Makers and walkaway under an economist perspective, yes please
Great post!
\n\nI can\'t wait to hang out in Brussels, Francis. I myself struggle with these huge themes. In my day-by-day it feels like operating on small, interesting projects is enough; that local positive change is happening, and that\'s OK, a honest day\'s work. But of course, I know I am not fixing anything, not really.
\n\nIt\'s hard to figure out what kind of systam these small things (like your own Woodbine, or Edgeryders) would give rise to, if they were pervasive. Nobody knows. I\'m supposed to be an economist, and economists used to be able to imagine and propose alternative economic systems; but now we have lost this ability. The only people I\'m seeing that can do this (kind of) are a selected few science fiction writers: Cory Doctorow, Bruce Sterling, William Gibson, Neal Stephenson, Peter Watts. Of these, Doctorow is the one who most explicitly engages with economic theory. Some years ago I wrote an economist\'s take on his novel "Makers", and I am now under the influence of his recent "[Walkaway]"(http://crookedtimber.org/2017/05/10/coases-spectre/). I think you, of all people, need to read it, if you have not done it already.
\n\nFor some months now, I have been thinking about raising some money to organise a workshop of economic science fiction, inviting some of these writers (as keynote speakers and proponents) and some economists (as discussants and debuggers). I hope to get down to it in the Fall.
', u'post_id': 35807, u'date': u'2017-09-08 18:20:39'}, {u'user_id': 3362, u'title': u'Sure, I attended:\n\n\n\nBioFabbing convergence in Ideasquare at CERN, ', u'comment_id': 37336, u'content': u'Sure, I attended:
\n\nAnd then of course OpenVillage!
', u'post_id': 37245, u'date': u'2017-10-02 15:34:48'}, {u'user_id': 4, u'title': u'By the way, @winnieponcelet, @gehan and @woodbinehealth: we ', u'comment_id': 37330, u'content': u'By the way, @winnieponcelet, @gehan and @woodbinehealth: we would eventually love to have a list of the events you attended as part of your fellowships. We need it for our own reporting to the EU Commission \u2013 part of it is a question about engagement and dissemination of the activities of the project. Thanks!
', u'post_id': 37245, u'date': u'2017-10-02 15:07:21'}, {u'user_id': 3362, u'title': u'@massimiliano can tell you more about that. He ', u'comment_id': 37328, u'content': u'@massimiliano can tell you more about that. He recently \'became a biohacker\' as a philosopher. He even wrote an article about it, set to come out soon
It's in the works. They joined our unconference session at the Bio Summit and we're now following up with them to see what their ambitions are and help them get started.
\n\nOne guy wanted to submit Open Insulin to a Bayer project call and we first had to discuss how to handle this type of thing. I personally don't want to be affiliated with Bayer.
\n\nToday during the global group call we came to a conclusion where we will draft some kind of Code of Honour that gives labs independence within that framework.
", u'post_id': 37245, u'date': u'2017-10-02 15:02:26'}, {u'user_id': 4, u'title': u'Also: Open Insulin to gain two new labs? ', u'comment_id': 37295, u'content': u'Also: Open Insulin to gain two new labs? Ping @federico_monaco and @ezio_manzini, I am not sure they saw this.
', u'post_id': 37245, u'date': u'2017-10-01 20:29:00'}, {u'user_id': 4, u'title': u'Nice work as always. I am so jealous ', u'comment_id': 37284, u'content': u'Nice work as always. I am so jealous of you guys! Why can\'t I be a biohacker too, instead of a boring old economist? 
I'm currently trying to just rewire my own brain with a couple of my close friends/comrades before we can try and take on the situation at large. Realized that I'm carrying a bit of malicious frameworks I must purge, but this is a personal practice, it takes up minimal bandwidth. I would think that media diets play a large part in this.
", u'post_id': 34103, u'date': u'2017-10-02 11:56:55'}, {u'user_id': 3, u'title': u'Critical mass in a world of distributed networks ', u'comment_id': 36985, u'content': u'Critical mass in a world of distributed networks is a hard concept to pin down, no? Which way are you building of the two you mention @aquamammal rewiring or building mass?
\n\nSorry for the quick reply as I am on the road..
Plus I\'m still rereading this post (always keeping it in an active browser tab) as I find it fundamental.
It informs harvesting of the OpenCare - @gehan made a good distinction in her backend work on harvesting, as a way to internalise and put into practise our learning journey these months: individual level harvesting, ground level, community level and meta level.
Thanks Frank.
I've been recognizing my past fascination with cyber-punk/speculative/subversive fiction as just another pattern of dead end consumerism. I guess it's all stepping stones. If it wasn't for that I wouldn't have the vocabulary and cultural references to appreciate visionary fictions from authors such as Octavia Butler or Ursula Le Guin. Who's to say that next year I'll look back and realize this was also, just another futile phase of intellectual development -_-. But never mind that, I'm curious what lays ahead of this new awareness. Is it more rewiring of the neural patterns?? Or is there a critical mass of people who will spill over into actual (r)evolution. Is this question going to be asked in perpetuity? Is that the definition of protracted struggle??
\n\nWith respect to communication Frank, I think media diets play a huge role in how we relate to each other here in the Coastal States of the US. I can't speak for the rest. But unplugging from facebook is basically the same as not watching HBO shows and CNN. Where as this type of consumption pattern is also layered since it can be seen as even more advanced virtue signaling, reminding me of people who only buy green products and live minimal, nothing is safe from ridicule and derision. But my point is when you become Mass Media Lean, more time is available for that face to face, flesh to flesh communication, just gotta get the words in with people between their commercial breaks, haha.
", u'post_id': 34103, u'date': u'2017-08-16 02:26:00'}, {u'user_id': 3362, u'title': u"I don't get much further than wayward or ", u'comment_id': 34178, u'content': u'I don\'t get much further than wayward or abstract thoughts myself, so thanks for taking the effort to write down these reflections Frank & Nicole @woodbinehealth
', u'post_id': 34103, u'date': u'2017-08-08 20:51:16'}, {u'user_id': 3367, u'title': u'Thanks, @gehan! That quote is from here: https://www.viewpointmag.com/2015/10/31/reproduction-as-paradigm-elements-for-a-feminist-political-economy/ ', u'comment_id': 34107, u'content': u'Thanks, @gehan! That quote is from here: https://www.viewpointmag.com/2015/10/31/reproduction-as-paradigm-elements-for-a-feminist-political-economy/
', u'post_id': 34103, u'date': u'2017-08-08 03:05:20'}, {u'user_id': 3613, u'title': u'Thought provoking post. Is the citizen/worker to citizen/consumer ', u'comment_id': 34105, u'content': u'Thought provoking post. Is the citizen/worker to citizen/consumer quote also Luk\xe0cs?
', u'post_id': 34103, u'date': u'2017-08-07 22:39:42'}, {u'user_id': 10, u'title': u'Well, I would love to come, Noemi! Still, ', u'comment_id': 37221, u'content': u'Well, I would love to come, Noemi! Still, I am lacking clarity and understanding about the conditions of my participation. It says "Passes and travel support are offered on a case by case basis, so the sooner you get involved the better." I understand that unfortunately, I came in quite late and that my post hasn\'t attracted much interest either.
\n\nNevertheless, I would be happy to offer a workshop during the Festival, if such an opportunity is still available. Please let me know, how to further proceed from here.
\n\nI would prepare something about the nexus between peace studies and health studies. One of the fathers of Peacebuilding, Johan Galtung, argues that the triangle diagnosis-prognosis-therapy can be applied. "There is the common idea of a system (of actors, of cells), of well-states and ill-states. The word pairs \u201chealth-disease\u201d from health studies and \u201cpeace-violence\u201d from peace studies can be seen as specifications of these very general labels."
\n\nBoth states of being actually need diagnosis (or analysis), not only violence and disease. Peace and health also have their conditions and their contexts. They may be different from the conditions for violence and disease, but could also be related to them. Galtung argues that a condition for peace could be an equitable relation, but we have to factor in the violence in a non-exploitative system, if something goes wrong within one single actor. Thus, a condition for health is a stable equilibrium of key parameters of the human body, and yet one cell or a colony of cells may go wrong, starting growing out of all proportions for instance.
\n\nIf the system falls out of its \u201cwell-state\u201d and shows symptoms of ill-states coming up, or they are already there, the question to be answered in a prognosis is whether the system is capable of self-restoration back to its well-state, or whether some other type of intervention is needed. Galtung warns that and intervention from the outside should not be identified with therapy. First, it may on the balance make the system worse (Do No Harm); Secondly, living beings may also be capable of providing self-therapy. Thirdly, self-restoration does not necessarily mean conscious, deliberate intervention. The system may \u201ctake care of itself\u201d. Our bodies have that amazing
capacity to restore equilibrium through incredibly complex mechanisms that we have hardly even started to understand, leave alone are capable of influencing. The interesting question to ask is how to provide positive conditions for those restorative functions.
Finally, when it comes to therapy, meaning by that "deliberate efforts by Self or Other to move the system back again to some well-state, or at least in that general direction". When we talk about the distinction between negative and positive peace, we should also keep in mind the difference between curative and preventive therapy. All four of them stand for well-states. There is no (or very little) disease or violence around. The systems are (almost) symptom-free, but in the negative case that is about all that can be said about them. The equilibrium is so unstable that a (minor) incident of hate speech can bring the system into an ill-state. In the negative case the equilibrium is more stable, meaning there is more capacity of self-restoration, even if the system may not be entirely symptom-free. Curative therapy aims at the former, preventive therapy at the latter. Both are needed for health and peace.
', u'post_id': 36085, u'date': u'2017-09-29 16:15:23'}, {u'user_id': 3, u'title': u'Long time, sorry for the late response Andrei, ', u'comment_id': 37016, u'content': u"Long time, sorry for the late response Andrei, I've been traveling all month.
We have a Frestyle section in the program where all the most recent proposals and others who did not have time to be circulated and coagulate enough interest by now are included.
Let us know if you're coming, hope to catch up!
", u'post_id': 36085, u'date': u'2017-09-26 10:20:21'}, {u'user_id': 4, u'title': u'Well, well. This is a welcome surprise, Andrei! ', u'comment_id': 36086, u'content': u'Well, well. This is a welcome surprise, Andrei!
\n\nI am giving myself some time to re-read your post... but really glad you made it
Sounds are as important as textual and visual information, but on opencare this aspect is rarely mentioned and considered. I think a inclusive pluralism of perception and sensing should be part of a democracy of care.
Care applications can be many; here some examples: a) awareness about blindness condition and design of devices and services; b) development of healthcare without harm to the ear by excess of noises in sensiible areas with newborn, patients, eldest; c) research in areas of intersection between bioacoustic, health, culture, d) use of sounds for teaching about medicine and healthcare professions integrated to visual and textual information on textbooks...and so on.
I can sympathise with that. I am more of an aural than a visual person myself.
\n\nBut: what would the care applications be?
', u'post_id': 36674, u'date': u'2017-09-20 21:08:52'}, {u'user_id': 3367, u'title': u'@sabgaby Thanks for the reply! Looking forward ', u'comment_id': 37066, u'content': u'@sabgaby Thanks for the reply! Looking forward to meeting! There will be informal time for small scale presentations/discussions, so I would definitely prepare something if you feel like you would like to host a small group about the topic. They\'ll be on day 2/3 for about 1-1hr 15mins. See you!
', u'post_id': 34456, u'date': u'2017-09-27 12:59:25'}, {u'user_id': 3801, u'title': u'Sorry for my absence on this post, I ', u'comment_id': 36739, u'content': u'Sorry for my absence on this post, I was on holidays and just returned.
\n\n@woodbinehealth: Too bad we couldn\'t make it to the program, but from the looks of the final program you had great proposals and I am looking forward to the event. I will be joining and my fellow colleague Dana is figuring out her schedule. I just have one question. Should we still prepare a session?
\n\n@aquamammal: I am sooo excited for all the interesting conversations and discussions we will be having! Looking forward to meeting you all!
', u'post_id': 34456, u'date': u'2017-09-21 09:05:59'}, {u'user_id': 3804, u'title': u'\n\nsabgaby:\nWhy do we believe open science and citizen ', u'comment_id': 36293, u'content': u'\n\nYeah, so relevant, got to do a double take at our assumptions sooner rather than later.
\n\nThe topic is so expansive, looking forward to your session. At the moment, because I\'m going through a lot of Dunbar and social network theory in my research, I\'m getting meta-feels while using the Edgeryders forum, power rules of participation and hyper sensitivity to "meaningful connections"...
', u'post_id': 34456, u'date': u'2017-09-15 00:11:53'}, {u'user_id': 3367, u'title': u'p.s. @aquamammal @liz_biospherex, your work is very similar ', u'comment_id': 36274, u'content': u'p.s. @aquamammal @liz_biospherex, your work is very similar to these topics! Check out the posts they made about Reproductive Sovereignty and The Dunbar Number.
', u'post_id': 34456, u'date': u'2017-09-14 20:58:00'}, {u'user_id': 3367, u'title': u"@sabgaby Thanks for this proposal! We weren't ", u'comment_id': 36273, u'content': u'@sabgaby Thanks for this proposal! We weren\'t able to include it on the formal presentation, but as you can see from the Final Program, there will still be time/space for these presentations. So we hope that you can still come and share your thoughts with the community! Looking forward to meeting!
', u'post_id': 34456, u'date': u'2017-09-14 20:57:02'}, {u'user_id': 3362, u'title': u'Happy to see you here @sabgaby! Looking forward ', u'comment_id': 34922, u'content': u'Happy to see you here @sabgaby! Looking forward to meeting you again in Brussels.
\n\nThe ideas you wrote already resonate with others here, so surely thought-provoking conversations will follow in October, much akin to the ones started in Geneva in May!
Nice to meet you and welcome from me too, @sabgaby!
I was talking to a health clinician earlier today and they were asking a similar question as I was telling them about the festival and how much community members in edgeryders look in the way of solutions provided by the citizenry - for better health and care (infra)structures, to put it simple.
She was asking something similar to your question: "Is participation, openness and choice inherently good?", the case being the advances and limits of the sequencing of DNA. For example how sometimes patients refuse to know if they have a mutation because the treatments are not available and dangerous to follow based on unconclusive research - so a case where knowledge and openness about medical science can have adverse effects.
\n\nNot sure if this helps, but do you have other examples?
\n\nOther than that, of course you\'re welcome to the festival, with or without a formal session. You\'ll be getting regular updates about the venue and things we need help with from @natalia_skoczylas.. as we draw closer to the date there\'s many things everyone can help with! I also see from twitter that you\'re in touch with @lucy at citizen science network, @rachel at hackuarium etc. Small world
That is great! Looking forward for the event! We are really excited and hope we can have an interesting and creative session!
', u'post_id': 34456, u'date': u'2017-08-18 11:56:14'}, {u'user_id': 4, u'title': u'So welcome, @sabgaby! I would be interested in ', u'comment_id': 34474, u'content': u'So welcome, @sabgaby! I would be interested in taking part. I have nothing much to offer, except that I know OpenCare data reasonably well. But I am curious of exploring the border zone where science meets democracy. So, bring it on. I will sit with you, and learn.
', u'post_id': 34456, u'date': u'2017-08-17 20:40:14'}, {u'user_id': 3367, u'title': u'Hey thanks for the proposal! These ideas sound ', u'comment_id': 34471, u'content': u"Hey thanks for the proposal! These ideas sound amazing and definitely asking similar questions to what we hope to cultivate at the festival. We've had a bunch of great proposals and will be looking through them all in the next weeks to come up with a finalized program. Be well and hope we get to meet in Brussels!
", u'post_id': 34456, u'date': u'2017-08-17 20:08:32'}, {u'user_id': 854, u'title': u'Hi @aquamammal, thank you for the clarification.\n\nI cannot ', u'comment_id': 36919, u'content': u'Hi @aquamammal, thank you for the clarification.
\n\nI cannot draw any truly general considerations here, but this boiling down essentially to a business decision, I would say that once the collectively instituted pool has a clear enough governance, any doctor should be at least willing to negotiate such a deal.
\n\nThis boils down to the size of the pool, its stability over time (and the possibility by an affiliated provider to check its current status), and the terms of payment (whether the "pool" would pay immediately, or with fixed delays, etc)... nothing formal I can think of further than this.
\n\nOf course, this being a negotiation with a huge human and ethical dimension to it, having front people that can truly communicate the case for this arrangement, and explain and defend its purposes, would greatly impact the chances of landing an agreement.
\n\n...but in general, as a doctor myself, I see not a single reason why my category should reject a deal anywhere in the world (at least for those countries with whose professionals I have interacted with...)
\n\nHave you encountered specific barriers that you would feel comfortable sharing with me, either here or privately, to analyse them together?
', u'post_id': 36474, u'date': u'2017-09-24 12:08:26'}, {u'user_id': 3804, u'title': u'\n\nmarkomanka:\nsympathetic health care professionals...?\n\nHi @markomanka, by "sympathetic" I ', u'comment_id': 36813, u'content': u'\n\nHi @markomanka, by "sympathetic" I meant like, health care professionals who were cool taking money from a group of people instead of a middle agent like an insurance company at a comparable rate with which they charge insurance companies.
\n\nSo if say 150 people pooled together a health fund, a doctor would take their money as payment at a negotiated rate as opposed to that uninsured rate. (I\'m also in the US where prices vary wildly and people go bankrupt all the time due to lack of insurance or insurance company litigation.
\n\nAnd yes, I agree, would love to explore like alternate forms of compensation for health care, haha, but let\'s keep it simple~
', u'post_id': 36474, u'date': u'2017-09-22 14:29:31'}, {u'user_id': 854, u'title': u'Hi \n\nI am not sure if I have ', u'comment_id': 36597, u'content': u'Hi
I am not sure if I have put the question in the right mental frame... I think I understand until the part about pooling local resources... and as instance even CERN utilizes schemes of mutuality for social security, and health insurance...
\n\nHowever, I may be missing the part about sympathetic health care professionals...? I understand most mutual insurances would cover costs for care with some "capping" mechanism, which is calibrated on the best offers they have been able to negotiate in advance: providers A and B would do it for the amount X, and if you go to another, and the amount is higher, you will be reimbursed up to X, or only Y% of the cost you incurred...
\n\nAs long as you pay in a valid currency, no sympathy by the providers really enters the picture... it\'s usually the mutual insurance that sets the policies.
\n\nIt may be different if you were discussing of an alternative currency here, but that requires an entirely different setting... I imagine if a LETS exists, then this would not be a problem?
\n\n...have I made sense to you @aquamammal?
', u'post_id': 36474, u'date': u'2017-09-19 14:13:00'}, {u'user_id': 3804, u'title': u'This a great starting point. Thanks @nadia Nadia! ', u'comment_id': 36555, u'content': u'This a great starting point. Thanks @nadia Nadia! Gonna dive deep~
', u'post_id': 36474, u'date': u'2017-09-18 16:38:16'}, {u'user_id': 8, u'title': u"Haven't said hi yet, so hi! ", u'comment_id': 36480, u'content': u'Haven\'t said hi yet, so hi!
I heard of two ones.... something in Peru I think @jean_russell do you remember that guy who was at the retreat in Thailand with us? I don\'t have the catalogue with description of participants...maybe @christina_jordan knows?
\n\nAnother one is the Amish, Alberto wrote about it here.
\n\nThen there is the Greek network of shadow clinics.
\n\nAlso @woodbinehealth might know of some? Maybe also @markomanka ?
', u'post_id': 36474, u'date': u'2017-09-17 18:21:33'}, {u'user_id': 3362, u'title': u'Hi @nabeel_p, great! There will be ', u'comment_id': 36823, u'content': u'Hi @nabeel_p, great! There will be room in the program to self-organise sessions. If you could share your experience during a small presentation/discussion, that\'d be awesome.
Looking forward to meeting you!
', u'post_id': 6392, u'date': u'2017-09-22 20:03:36'}, {u'user_id': 3311, u'title': u'This Theme sounds incredibly exciting to me as ', u'comment_id': 36802, u'content': u"This Theme sounds incredibly exciting to me as its aligned to the work I'm doing and my personal interests. I think of Action Research / Citizen Research, and how that, if seriously considered, disputes and overthrows the desire for current models of healthcare and interaction, at least in South Africa.
\n\nBefore the provision of various therapies and medicines, the majority of South Africans are excluded from any conversations or basic knowledge relay when it comes to health and healthcare. The main reason is we cannot afford healthcare structured within the capitalist model, resulting in the exclusion of the vast majority of persons even understanding illness or the body.
\n\nOur work is about filling that gap by using the Arts and Community Driven/Devised strategies for Communication and Knowledge transfer to stimulate these discussions. What happens when Communities, each with its own story, persons, folk lore, arts mediums, dynamic etc... What happens when they drive the agenda. I'm very interested in this and would love to meet like-minded persons and/or forge relationships focused on this divide.
\n\nI'd be open to a small presentation perhaps.
", u'post_id': 6392, u'date': u'2017-09-22 09:14:41'}, {u'user_id': 3362, u'title': u'@nadia the question popping up the most lately ', u'comment_id': 35091, u'content': u'@nadia the question popping up the most lately is "will this fit in the program?" so I\'m hesitant to reach out for more content. We do have some interactive experiments lined up, not in the least @rachel with the micronuclei & water analysis. And some more on the way.
', u'post_id': 6392, u'date': u'2017-08-30 18:17:57'}, {u'user_id': 3, u'title': u'A calll @winnieponcelet would need to make or ', u'comment_id': 35088, u'content': u'A calll @winnieponcelet would need to make or spread with the crowd...
', u'post_id': 6392, u'date': u'2017-08-30 17:54:21'}, {u'user_id': 3704, u'title': u"why does the 'green fluorescence' jpg on this ", u'comment_id': 34808, u'content': u"why does the 'green fluorescence' jpg on this page look so much more like bioluminescence?
", u'post_id': 6392, u'date': u'2017-08-26 14:41:59'}, {u'user_id': 8, u'title': u'If we are doing any exhibitions or performances ', u'comment_id': 34743, u'content': u'If we are doing any exhibitions or performances on this theme, Ars electronica has a fellowship for artists on the topic. Maybe some of the artists would like to participate in this theme https://www.aec.at/center/en/opening-beyond-the-lab/
', u'post_id': 6392, u'date': u'2017-08-25 19:43:19'}, {u'user_id': 2095, u'title': u'@christinsa I enjoyed reading your article. FB ', u'comment_id': 36740, u'content': u'@christinsa I enjoyed reading your article. FB suggested this competition when I shared it.
http://innovateforrefugees.mitefarab.org/en/site/index
I thought maybe volunteers and refugees can work on developing solutions for problems they are facing together, and participate with a chance to win.
And now what? After almost one year.
\n\n@aravella_salonikidou @alex_levene
', u'post_id': 792, u'date': u'2017-09-21 09:11:49'}, {u'user_id': 3403, u'title': u'yes please !', u'comment_id': 33434, u'content': u"I would like to have some more contacts in Thessaloniki; I still have room in my agenda (december) to help a couple of organisations
\n\nf.ex with trauma info sessions for the helpers (basic trauma information, interventions and exercises) or by helping develop on ongoing 'how-to-cope-with-trauma-practice, or...
\n\nthx, ybe
", u'post_id': 792, u'date': u'2016-10-18 11:25:10'}, {u'user_id': 3404, u'title': u'About solidarity', u'comment_id': 29081, u'content': u'Hey @johncoate and @Gentlewest, I just saw these last messages of yours and I am\xa0sorry I haven\'t replied earlier. @johncoate Solidarity can arise in many ways and forms, and both formal associations and informal collectives have offered amazing solidarity solutions in many ways. For me what matters is not formality or non-formality,\xa0but \xa0the level of participation and the style of governance.\xa0In our case, the R2R call center is an informal collective, supported by the open global cooperative ecosystem of FairCoop on the global level, which is also a self-organised project with a global community involved. @Gentlewest thank you for the nice words, I couldn\'t agree more.
', u'post_id': 792, u'date': u'2017-06-02 19:27:47'}, {u'user_id': 3639, u'title': u'glad to learn about R2R concept.', u'comment_id': 27821, u'content': u'It is a beautiful way of reaching out to the world and letting people know how , living in a confined environment(camps) can be challenging.If we are \xa0our brothers and sisters keepers, then we will make out time from our very busy schedule to donate and help millions in those camps. He cared enough to share this story, so please y\'all, return the favor by giving whch will go a long way of changing a life. " sharing is caring", Giving is transforming and investing in other peoples lives.The best investment, is in the life of another human being. Thanks for sharing
', u'post_id': 792, u'date': u'2017-05-24 01:00:09'}, {u'user_id': 2915, u'title': u'"solidarity"', u'comment_id': 26053, u'content': u'This is a fascinating project. \xa0I have alerted a close friend, an American journalist who has done important radio and print reporting on the refugees in Greece, to come have a look at this topic becfause of this specific project and because of the networking going on in this conversation.
\n\nOne question: by "solidarity" do you mean a formal association or something more loosely arranged through a kind of self-identification?
', u'post_id': 792, u'date': u'2016-10-19 14:30:31'}, {u'user_id': 3404, u'title': u'great', u'comment_id': 25462, u'content': u"Your plans sound great, let's speak again closer to the time that you come and see which groups/places/people you are interested in meeting here related to your project. Your services could be very beneficial to refugees so we can get you in contact with groups working with refugees or the social solidarity clinic of Thessaloniki which is another great initiative working on a community voluntary basis.
", u'post_id': 792, u'date': u'2016-10-19 00:16:31'}, {u'user_id': 3404, u'title': u'Thanx Ybe, i agree', u'comment_id': 25250, u'content': u'@ybe thanks for your kind words, i agree with what you are saying about these two factors and this is what i tried to highlight in my article! Your traumatour project also seems super interesting and it is very exciting to see that more people are planning to visit Thessaloniki with their projects in the future! I am in contact with people working in alternative health and spiritual health projects here in Greece so I could put you in contact with them, if you are interested.
', u'post_id': 792, u'date': u'2016-10-18 11:18:26'}, {u'user_id': 3403, u'title': u'love it', u'comment_id': 24568, u'content': u'I find this a very hopeful story
\n\n1) because of the involvement of refugees themselves - it is so empowering to be able to do something to improve your life, to have work, to have a life, an income and to be part of a community
\n\n2) because of the \'amplification\' factor - you put a lot of energy in connecting different initiatives and projects and that is what we need to create general and global change
\n\nthx
\n\nybe from traumatour (soon in thessaloniki)
', u'post_id': 792, u'date': u'2016-10-18 07:06:58'}, {u'user_id': 3404, u'title': u'Great inspiring stories', u'comment_id': 21134, u'content': u'Dear @Noemi thanks for the encouraging words and suggestions! I know about the great work of \'RefugeesWork\' initiative as we collaborate with them through FairCoop on a global level. I am not sure they know about our local call center project in Thessaloniki, but I am glad that this article and your comment gave the opportunity for this \'connection\'. I hope more people continue to share their inspiring stories in order to keep discovering common paths and shared visions.
', u'post_id': 792, u'date': u'2016-10-15 18:34:40'}, {u'user_id': 3404, u'title': u'Good to hear about HelpRefugees and to have you here in Greece', u'comment_id': 19594, u'content': u'@Alex_Levene good to learn about the work of HelpRefugees, I have not come across them so far but will look for more information and will try to contact their team in Greece to see what they are doing. I am very much in favour of refugee self-organisation or projects involving the solidarity movement and refugees in horizontal relationships (althoug I am aware that this is not always easy to achieve) but I can see and understand that some of the more formal orgs are also being organised in a way that allows quite a lof of self-organisation or self-management in practice and are doing a lot of great work on the ground. I have seen this already with some organisations working in the camps around Greece.
\n\nIt will be great also to have you here in Greece! Please let me know when this happens and I will arrange to meet you with our group in order to share our experiences and other valuable information.
', u'post_id': 792, u'date': u'2016-10-18 10:56:49'}, {u'user_id': 2569, u'title': u'Thank you', u'comment_id': 19593, u'content': u'Many thanks for the kind words @ChristinSa, i\'m really glad that my words touched you.
\n\nIt\'s interesting also that it made you think of camps at places like Idomeni. The team who manage the warehouse in Calais and do a lot of the groundwork on the Jungle camp is led by the British charity organisation HelpRefugees. They also did a lot of work in Idomeni during the last year as well.\xa0
\n\nI believe they have now moved their operations in Greece to Thessaloniki, so perhaps you have come across them and their team members? I saw that they recently opened a new distribution warehouse there.
\n\nI have been talking to their team and i\'m trying to find a time in early January when i can come out to Greece and talk to them/see what they are doing there. I hope that during this time i might also be able to meet some of the great people and organisations that have shared their stories on Edgeryders (@To-Steki, @Aravella Salonikidou, @Pavlos)
', u'post_id': 792, u'date': u'2016-10-16 06:57:19'}, {u'user_id': 3404, u'title': u"for sure, let's keep in touch everyone! ", u'comment_id': 19589, u'content': u"for sure, let's keep in touch everyone!
", u'post_id': 792, u'date': u'2016-10-19 00:07:36'}, {u'user_id': 3404, u'title': u'Great news', u'comment_id': 19588, u'content': u'@Alex_Levene this is great! I and people from our collective will be happy to meet with you and discuss about our projects and your experience in Calais. I will also try to see if I can find some cheap options to suggest for your stay. Looking forward to meeting you in Thessaloniki!
', u'post_id': 792, u'date': u'2016-11-26 23:04:02'}, {u'user_id': 3404, u'title': u'You are welcome', u'comment_id': 19587, u'content': u'@Noemi and everyone else you are more than welcome to also join! Would be great to meet in person and exchange information and ideas! I am sure @Jenny_Gkiougki would love that as well
Between Natalia having gone this summer,\xa0@Ybe just now, and you, well.. we should all go. Also ping @Jenny_Gkiougki if she will be around.
', u'post_id': 792, u'date': u'2016-11-26 20:08:06'}, {u'user_id': 2569, u'title': u'Visiting in January', u'comment_id': 19585, u'content': u'@ChristinSa\xa0@To_Steki\xa0@Positive-Voice\xa0@Aravella Salonikidou
\n\nI am planning on coming to Thessalonki in the middle of January. (15th-19th) Part of the trip will be touch volunteers and get to know what is being done there by Help Refugees (who i worked with in Calais this year). I\'d also love to meet up with you and see your projects. If anyone has any suggestions for cheap places to stay whilst we\'re out there please let me know.
', u'post_id': 792, u'date': u'2016-11-25 12:47:52'}, {u'user_id': 3403, u'title': u' I am so looking forward to meeting ', u'comment_id': 19584, u'content': u' I am so looking forward to meeting you all !
Me, @ChristinSa @To_Steki @Positive-Voice and maybe some others, we (or our projects) are in the same neighbourhood. So, when @Ybe and @Alex Levene visit Thessaloniki, we can arrange a creative meeting! Thanx to this community!
', u'post_id': 792, u'date': u'2016-10-18 15:02:16'}, {u'user_id': 4, u'title': u'And do not forget about us :-)', u'comment_id': 19582, u'content': u'It\'s lovely to see you "next door neighbours" connect in the context of a global community! Let\'s stay in touch, though, there are many people in the Edgeryders community, all over Europe, trying to help out, healing our ailing societies. @Alex_Levene is an obvious example, but there are others. The potential for mutual learning is obvious.\xa0
', u'post_id': 792, u'date': u'2016-10-18 13:35:06'}, {u'user_id': 3402, u'title': u'Great!', u'comment_id': 19577, u'content': u'See you soon!
', u'post_id': 792, u'date': u'2016-10-18 11:08:21'}, {u'user_id': 3404, u'title': u'This is great Aravella', u'comment_id': 19572, u'content': u'This is great @Aravella_Salonikidou! I have heard about your project and have \'seen\' you virtually here and there on facebook, mainly through Room 39 and Steki Metanaston groups/pages, as I can understand that you are also helping the people there. I am also involved with some of the groups at Steki so we could perhaps meet there sometime, or at Micropolis, another social space nearby where this R2R call center project is based. I would love to see how we could possibly collaborate and help each other and I am sure that there is a lot to share/learn from the work that we and other people in our networks, are doing. I will connect with you on facebook to stay in touch!
Thanx for sharing @ChristinSa! \xa0It could be nice to meet you! We run "next door\'s" project and we don\'t know each other. Now I think we have this chance. I\'d like to know more details and how I can help.
', u'post_id': 792, u'date': u'2016-10-15 20:49:12'}, {u'user_id': 3404, u'title': u'Glad you find this interesting', u'comment_id': 19544, u'content': u'I am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.
', u'post_id': 792, u'date': u'2016-10-18 10:10:38'}, {u'user_id': 3402, u'title': u'I think there are many projects', u'comment_id': 19463, u'content': u'@Alberto try these: @Alberto%20try%20these:%20http://www.enallaktikos.gr/ar22107el-o-afgan">http://www.enallaktikos.gr/ar22107el-o-afgan
\n\nhttp://www.huffingtonpost.gr/2016/06/16/koinonia-sosivia-prosfyges-_n_10483414.html
', u'post_id': 792, u'date': u'2016-10-16 08:53:29'}, {u'user_id': 4, u'title': u'What?!?', u'comment_id': 19368, u'content': u'"In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad."
\n\nDo you have more information about this story, @ChristinSa ? It sounds amazing!\xa0
', u'post_id': 792, u'date': u'2016-10-15 19:02:35'}, {u'user_id': 3402, u'title': u"Thank you for the encouragement! I'm working on ", u'comment_id': 18497, u'content': u"Thank you for the encouragement! I'm working on my article these days, so I'm a little bit (more) buzy! I'm glad to know about R2R. I didn't know about this project. I'll be in touch!
", u'post_id': 792, u'date': u'2016-10-15 20:29:44'}, {u'user_id': 3, u'title': u'Timely roles for Network connectors, documenters, researchers', u'comment_id': 17769, u'content': u'Great story, Christine! I find it so useful to see people like you, Alex, @Aravella_Salonikidou who are not just contributing on the ground, but also take the time to write\xa0the story\xa0and build this layer of connectivity that is needed for multiplication as you mention.. or remodeling of cooperation. It seems you\'re on a promising path. I will try to support this in any way I can. And if you know someone who is interested to set up shop online to work out distribution of eg. handmade objects\xa0abroad\xa0- this team in Berlin led by @ninabreznik and @serapath\xa0are offering free coding courses for refugees.
', u'post_id': 792, u'date': u'2016-10-15 13:00:36'}, {u'user_id': 3404, u'title': u'Thanx for pointing out these beautiful articles', u'comment_id': 15996, u'content': u'@Alberto thank you for your comment and for pointing out these 2 great articles by @Alex_Levene! I enjoyed reading them from the first until the last word and felt very touched as they brought up images of informal camps in Greece (e.g. Idomeni in the north borders, the islands and other places) where similar situations and an amazing solidarity movement arose to provide care for the people there.
\n\nIn all these places, it was very encouraging to see what can be achieved when determination of refugees and solidarity from activists/volunteers is combined in a self-organised and impulsive way. In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad.
\n\nThere is many hopeful examples of such great initiatives in Greece and other countries and I am sure they will multiply as refugees are settling for a longer-time period in their new living places.
\n\nWhat seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.
', u'post_id': 792, u'date': u'2016-10-15 14:12:12'}, {u'user_id': 4, u'title': u'R2R!', u'comment_id': 9184, u'content': u'Great stuff, @ChristinSa !\xa0I love the "R2R" concept. With @Alex_Levene we had already appreciated the self-organising skillls demonstrated by refugees in the case of The Jungle in Calais (I highly recommend you read his beautiful posts: one and two).
\n\nThe Jungle behaves the way it does because it is not an official camp. It\'s more like a favela: the first stop in a migrant\'s social journey, which mostly goes upwards in the social ladder. So, refugees are more free to cooperate, R2R, then they would be in an official camp. Their ingenuity and skills come into play: they make their own lives better, and become empowered at the same time. Your own story, it seems, goes much in the same direction.\xa0
', u'post_id': 792, u'date': u'2016-10-14 15:00:12'}, {u'user_id': 3403, u'title': u'hello, maybe I can be of help for ', u'comment_id': 7782, u'content': u"hello, maybe I can be of help for the chapter 'how to cope with emotional/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.
", u'post_id': 737, u'date': u'2016-09-16 20:35:27'}, {u'user_id': 3402, u'title': u"@ybe thank you for your interest! I' d ", u'comment_id': 11310, u'content': u'@ybe thank you for your interest! I\' d like to know more about your work but there something wrong with the link. Could you repeat it?
', u'post_id': 737, u'date': u'2016-09-14 19:59:10'}, {u'user_id': 3403, u'title': u"here's the link again", u'comment_id': 12428, u'content': u'', u'post_id': 737, u'date': u'2016-09-14 20:04:24'}, {u'user_id': 3402, u'title': u'@ybe thank you!', u'comment_id': 12889, u'content': u"I'll be back soon!
", u'post_id': 737, u'date': u'2016-09-15 19:57:38'}, {u'user_id': 3402, u'title': u'When will you visit us?', u'comment_id': 13540, u'content': u'@ybe I\'d like to know when will you visit Greece. I think it will be helpfull for the team.\xa0
', u'post_id': 737, u'date': u'2016-09-20 13:55:23'}, {u'user_id': 3403, u'title': u'december 2016 / January 2017', u'comment_id': 13721, u'content': u'@Aravella Salonikidou I plan to visit Greece in december 2016 / January 2017 - I can stay a month or so
', u'post_id': 737, u'date': u'2016-09-20 18:25:43'}, {u'user_id': 3402, u'title': u'Perfect!', u'comment_id': 13785, u'content': u'@ybe hope to see you soon!
', u'post_id': 737, u'date': u'2016-09-23 19:57:24'}, {u'user_id': 4, u'title': u'Make sure you guys keep us in the loop!', u'comment_id': 13827, u'content': u'We all stand to learn much from @ybe \'s visit to @Aravella_Salonikidou . If you could find the time to blog about it, I (and, I think, many others)\xa0would be super-interested in reading and commenting.\xa0
', u'post_id': 737, u'date': u'2016-09-24 09:16:22'}, {u'user_id': 3403, u'title': u"I'll keep you posted !", u'comment_id': 13832, u'content': u'I\'ll keep you posted . I may be going to Calais as well - via Alex Levene, keep you posted on that too.
We stand ready to diffuse\xa0your posts in the Edgeryders network, @ybe \u2013 and we would be happy to host them, if\xa0you do not have a blog of your own.
', u'post_id': 737, u'date': u'2016-09-24 17:47:00'}, {u'user_id': 3403, u'title': u'I have a blog on my website. What ', u'comment_id': 13837, u'content': u"I have a blog on my website. What is easiest to do for you to spread the news? What do you need from me? Bloglinks? Newsletter subscription? I blog ca. once a week, newsletter is more like once a month. And on twitter we're already connected :))
", u'post_id': 737, u'date': u'2016-09-24 17:52:00'}, {u'user_id': 3, u'title': u'Hang in there', u'comment_id': 14969, u'content': u'@Aravella_Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups\' efforts to respond to the refugee crisis.. all very vocal.\xa0I wonder:\xa0with so many diverse community efforts,\xa0haven\'t there been any events\xa0where active\xa0people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?
\n\nI realise it\'s a lot to expect though, I imagine\xa0coping\xa0with an unpredictable\xa0situation already takes a lot of effort.\xa0
\n\nI remember @Alex_Levene writing about the camp in Calais and the fact that coordination happens through medium to long term volunteers. Could they\xa0be the kind of primary\xa0asset that can help do inventoring, mapping, research for this stage you\'re at?
', u'post_id': 737, u'date': u'2016-09-14 06:47:38'}, {u'user_id': 3402, u'title': u'@Noemi The situation is not so simple as ', u'comment_id': 17482, u'content': u'@Noemi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way. But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could\xa0 make a general call and most of the NGO\'s worked separately. We \'ve tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.\xa0
\n\nAt the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I \'m trying to solve the problem with an idea called "smart boxes" (difficult to explain at the moment). I don\' t know if there\'s something out there that can help. This is why I\'m here...
', u'post_id': 737, u'date': u'2016-09-14 21:13:48'}, {u'user_id': 4, u'title': u'Teaching each other how to respond', u'comment_id': 18433, u'content': u'Wow, @Aravella_Salonikidou , what a story. My favourite part, however, is this:
\n\nAt the moment I\'m focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can "play" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises.\n\n
In the language we use here in Edgeryders, you are working on a community and documentation for it to operate on common knowledge. There are also opencare\'s main elements. This is the community equivalent of what venture capitalists call "scaling". You extend your reach, but without large money investment and unwieldy hierarchies.\xa0
\n\nMaybe someone\'s already asked, but... there is a chance we might help you get funding for your initiative (if that\'s what you need). We are working on a sort of collective proposal, where the proponent is not just us, but a whole "smart swarm" of grassroots initiatives like yours. More information is here.\xa0
', u'post_id': 737, u'date': u'2016-09-16 10:28:08'}, {u'user_id': 3, u'title': u'I understand', u'comment_id': 19161, u'content': u'What you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.
\n\n@Franca Locati mentioned something I couldn\'t forget: she says you can sometimes\xa0help someone too much. She was\xa0refering to the way organisations work in providing services for newcomers. You two\xa0should definitely connect, Franca worked for quite some time in the Italian system of refugee reception, for\xa0the City of Milano, and managed to set up a platform for connecting a lot of\xa0language teaching organisations around to make a more coherent service to the people needing it.
', u'post_id': 737, u'date': u'2016-09-16 11:07:28'}, {u'user_id': 2569, u'title': u'"So, large mobilization doing suboptimal work is still ', u'comment_id': 19203, u'content': u'"So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help"
\n\nthis is definitely the case at the Calais camp
', u'post_id': 737, u'date': u'2016-09-16 20:30:14'}, {u'user_id': 4, u'title': u'Suboptimality', u'comment_id': 19220, u'content': u'@Alex_Levene and @Aravella_Salonikidou (and whoever is interested), let\'s all make a note to go deeper into the notion of suboptimality. I think it could be important. Normal policy is that\xa0fast, messy, large scale response has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans. If we can make a case for this to be the wrong thing to do in some case, it is goping to be an important policy contribution.\xa0
', u'post_id': 737, u'date': u'2016-09-17 09:49:38'}, {u'user_id': 2569, u'title': u'Will think and post here', u'comment_id': 19222, u'content': u"I think there's a lot to be said about suboptimality when it come to care and response. I will have a think and put some words together for you.
", u'post_id': 737, u'date': u'2016-09-20 16:57:44'}, {u'user_id': 2569, u'title': u"So i've been thinking a little about this`", u'comment_id': 19227, u'content': u'Just a few thoughts on suboptimality to hopefully\xa0drive the discussion around this topic.
\n\nIt is\xa0the case from Alberto\'s comment\xa0that "fast, messy, large scale response\xa0has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans"
\n\nIt seems that this is true in\xa0cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa) The above examples are plans for\xa0disasters that occur frequently and regularly in places that share a geographic similarity or border.\xa0It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas.
\n\nBut,\xa0in order for us to \'leave it to the professional\' there have to be NGO\'s willing, and able to step into that role in the space.
\n\nWhat has happened in\xa0Greece and Calais is\xa0we have seen NGOs step up initially, but then step back from the problem.\xa0Often because they cannot work with the changing political situation. I am thinking here of\xa0MSF pulling out of\xa0Lesvos after\xa0the EU-Turkey repatriation deal occurred. (http://www.msf.org.uk/article/why-is-msf-closing-its-moria-project-on-lesvos)
\n\nThe French government\'s\xa0reluctance to acknowledge the legitimacy of the Calais camp\xa0has created\xa0a\xa0vacuum.\xa0So,\xa0NGOs have struggled to work in that area. Because they cannot work\xa0under license, they cannot reduce\xa0the suffering there, except on a micro\xa0scale.
\n\nPerhaps the idea of sub-optimality in the system comes back to a\xa0wider\xa0idea. One that is floating around in other areas of the site, that of \'unlicensed behavior\'. Once\xa0an organisation or NGO becomes \'legitimate\',\xa0it tends to deal\xa0with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly).\xa0It becomes more constrained to\xa0do\xa0things \'the correct\xa0way\' and less able to focus\xa0on doing what is required.
\n\nWhen there isn\'t a precident\xa0for dealing with a disaster on the scale or in that location two options remain. Either improvise or adapt. Both options work with sub-optimality from different directions.\xa0
\n\nThe NGO is most likely to adapt. They will find solutions used in other areas, or to address different problems, and adapt them to the new situation. These solutions are \'tried and tested\' and so they can point to evidence that shows where they have worked in the past. The NGO avoids looking bad\xa0if this approach fails, because they can show ways it has worked before. Their cultural and political capital stays strong and they can work on a new response in the long term. I expect that the lessons learned by MSF et al during this decade\'s\xa0refugee crisis in Europe will lead to contingency plans that will be used around the globe in the future. They struggle to deal with the problem in real time though.
\n\nAt the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to\xa0fail\xa0because they have no social or political capital to diminish, except with the people they work with directly.\xa0This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece.
\n\nWhat is required is a way of feeding the experiences and innovation prototyped by the improvised,\xa0citizen-led organisation\xa0into the institutional learning of\xa0NGOs
', u'post_id': 737, u'date': u'2016-09-27 15:39:14'}, {u'user_id': 2551, u'title': u'Nepal ought to be a good case', u'comment_id': 19228, u'content': u'They ran the SOPs (but did not factor in that Nepal is hard to get to/around in) so a lot of dogs were flown in to look for people under the rubble who had mostly perished by the time the dogs came. While they were walking their dogs in Kathmandu you really needed water treatment - absence of which can quickly lead to a loss of life that drawfs the ones they might have pulled from the rubble. Fortunately that did come before epidemics happened.
\n\nAt the same time citizens were either sitting under tarps in the rain, complaining about a lack of water (while not catching the rainwater!), or standing in very long lines at the government water truck that could only serve 1 person at a time because no one had thought of a manifold.
', u'post_id': 737, u'date': u'2016-11-03 13:15:55'}, {u'user_id': 3402, u'title': u'This is why it needs to press the ', u'comment_id': 19229, u'content': u'This is why it needs to press the smart mode button.
', u'post_id': 737, u'date': u'2016-11-03 22:46:20'}, {u'user_id': 3393, u'title': u'Undisclosed content ', u'comment_id': 20496, u'content': u'Undisclosed content', u'post_id': 737, u'date': u'2016-09-14 15:26:11'}, {u'user_id': 3, u'title': u'Who then takes care of the volunteers?', u'comment_id': 21911, u'content': u'@Village-Psy maybe you can help us understand why self care is so expensive for one to offer it to herself. Have you read about the 24/7 caregivers who simply can\'t switch off? If you have something to offer to that discussion and would be willing to head over there\xa0it would be very well received.
', u'post_id': 737, u'date': u'2016-09-23 00:19:23'}, {u'user_id': 3393, u'title': u'Undisclosed content ', u'comment_id': 22549, u'content': u'Undisclosed content', u'post_id': 737, u'date': u'2016-09-23 07:47:36'}, {u'user_id': 3, u'title': u'I see..', u'comment_id': 22795, u'content': u'Can\'t disagree with what you write @Village-Psy and the solution found in Calais seems to be training for self care and making your mind catch up with the program somehow. Because I\'m sure anyone rational\xa0can agree self care is important, but managing emotions and urges is something for another side of your brain..
', u'post_id': 737, u'date': u'2016-09-23 14:08:42'}, {u'user_id': 3402, u'title': u'A good idea!', u'comment_id': 24150, u'content': u'@Village-Psy it\'s a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we\'ll have the chance to care about us better and having fun as you suggest.
\n\nThank you!
', u'post_id': 737, u'date': u'2016-09-15 20:26:25'}, {u'user_id': 3403, u'title': u'would like to fix date(s)', u'comment_id': 26039, u'content': u'@aravellasalonikidou Hello Aravella , I am in the middle of organizing and planning my tour to Greece. I would like to fix date(s) with you. What do you need from me? What could I offer? To the Thessaloniki projects you\'re in i? Maybe have a skype conversation this week? I would like to fix dates for the beginning of december. Would that be allright with you?
\n\ncontact me by mail ybe@traumatour.eu or skype chez_filly19
\n\nthx - I look forward meeting you!
', u'post_id': 737, u'date': u'2016-10-17 09:49:23'}, {u'user_id': 4, u'title': u'Exciting!', u'comment_id': 26954, u'content': u'It\'s great to see you ladies @ybe and @Aravella_Salonikidou scheme! I am sure\xa0your meeting will be a great success.
', u'post_id': 737, u'date': u'2016-11-03 21:54:07'}, {u'user_id': 3402, u'title': u'No problem! Anytime it;s ok!\n\naravellasalonik@gmail.com\xa0 skype aravella1717 ', u'comment_id': 27641, u'content': u'No problem! Anytime it;s ok!
\n\naravellasalonik@gmail.com\xa0 skype aravella1717
', u'post_id': 737, u'date': u'2016-11-03 22:39:48'}, {u'user_id': 3686, u'title': u"so i'm coming to this a little late. ", u'comment_id': 34648, u'content': u'so i\'m coming to this a little late. disaster studies takes the approach that no disaster is man made. border situations often lead to a denial of responsibility by the state player.
\n\ni wonder what you opinions are on how to adapt to anti-solidarity laws that make humanitarian aid into organised crime. sort of gangs of care and fair treatment.
\n\nThe informal networks that have emerge in France, Italy, Macedonia and Bulgaria are definitely "sub optimal". but if we look less at efficiency and towards effect. lots of important work is still done.
\n\nalthough ngos cant always operate in these places as hubs of learning and upskilling that can be used in other contexts.
', u'post_id': 737, u'date': u'2017-08-24 10:25:26'}, {u'user_id': 4, u'title': u'Hello @michael_dunn, nice to meet you \u2013 I ', u'comment_id': 34734, u'content': u'Hello @michael_dunn, nice to meet you \u2013 I don\'t think we have "spoken" before. Can you say more on the anti-solidarity laws you mention? I have read about the controversial code of conduct that the Italian government wants NGO to sign, but am not familiar with the situation in Greece.
', u'post_id': 737, u'date': u'2017-08-25 16:39:17'}, {u'user_id': 3686, u'title': u"I don't know much of the Greek situation. ", u'comment_id': 34768, u'content': u'I don\'t know much of the Greek situation.
No anti solidarity laws to the best of my knowledge. Italy runs a humanitarian corridor many through massive NGOs like red cross who run the camps. Anti solidarity ordances are passed by the local governance against individuals sharing food etc. Permits can be difficult for small NGOs to get. It varies across Italy. Migrants complain about it as a form of segregation. Serbia doesn\'t enforce its anti solidarity. Laws on EU passport holders. Charities can get permits but limited in number. A lot of people still publicly flaunting laws. Generally without consequence. Hungary and Poland both have laws on books more hostile climate. Both migrants and supporters crimalised.
Macadonia super server all but largest NGOs refused. "Talking to the blacks is unacceptable" can result In expulsion or charges.
Anti solidarity laws and the detention crisis are a new jim crow. They foster a lack of understanding and climates of violence long term .
The argument that helping them only encourages them is used repeatedly.
In the words of martin Luther king
Rights delayed are rights denied.
Hi, fellows! Sorry for this delay. I\' m out of the grid for a long time and i\'ve lost the thread i think. Nice to meet you @michael_dunn. (It\'s not the right topic but i\'m trying hard all these months but now i see is impossible to participate at OpenVillage in October. Anyway, next time!). About the anti-solidarity laws here in Greece, we do have problem. The transportation is illegal and many people have had problems and also arrested because they helped refugees to go ...somewhere anywhere. We also have had problems when sharing food but police wasn\'t always very strict. Now everything is under control at the camps but there are many ways for the individuals to help without problems.
', u'post_id': 737, u'date': u'2017-09-15 20:49:39'}, {u'user_id': 4, u'title': u'\n\naravella_salonikidou:\nnow i see is impossible to participate at ', u'comment_id': 36389, u'content': u'\n\nWhat a shame @aravella_salonikidou! Next time, indeed.
What a pity I should say! "Cosmus diy" team (and our space) is not ready yet. Two months of bureaucracy but now we became an association officially.
', u'post_id': 737, u'date': u'2017-09-17 20:45:58'}, {u'user_id': 4, u'title': u'Well done. Keep us in the loop, please! ', u'comment_id': 36483, u'content': u'Well done. Keep us in the loop, please!
', u'post_id': 737, u'date': u'2017-09-17 21:24:37'}, {u'user_id': 3402, u'title': u'Till now I focused to build the team ', u'comment_id': 36485, u'content': u'Till now I focused to build the team and our meeting place. I think next month we will be ready to announce our first projects. And of course, to introduce you new members...
Why and when they passed these laws?
', u'post_id': 737, u'date': u'2017-09-19 19:20:02'}, {u'user_id': 3402, u'title': u'Sometimes are not laws exactly, but orders. These ', u'comment_id': 36650, u'content': u"Sometimes are not laws exactly, but orders. These orders maybe are against a law but it's too late when you prove it.
", u'post_id': 737, u'date': u'2017-09-19 21:44:56'}, {u'user_id': 4, u'title': u' Ceramic is superclean now, at least in ', u'comment_id': 36644, u'content': u' Ceramic is superclean now, at least in Sassuolo. The big push started in the late 60s, and was complete by the late 80s. But the boom years were a mess.
Yeah, really interesting. Growing up in Shanghai and Hsinchu, Taiwan, I remember when I moved around Asia and seeing yearly changes from green environments to concrete ones, so I had this framework of going the other way, haha. And my limited experience in around the satellite towns around Kampala, Uganda. Seeing pictures of what was and the present severe desertification.
\n\nI\'ll never see ceramic the same way again.
', u'post_id': 35325, u'date': u'2017-09-18 16:43:52'}, {u'user_id': 4, u'title': u'\n\naquamammal:\nNever framed it this way.\n\nYou know, I grew ', u'comment_id': 36275, u'content': u'\n\nYou know, I grew up in an industrial town in Northern Italy, during boom times. Full employment, high growth, the works. The town is called Sassuolo: it was then, and still is, the world capital of ceramic tile production. At the time, it served 40% of the world market in ceramic tiles.
\n\nCeramic tiles are a support of clay which gets sprayed with a kind of paint called glaze. The whole thing is then baked at high temperatures ( ~ 1,000 C\xb0). The glaze vitrifies, and the tile becomes chemically inert. Glazes, however, often contain heavy metals to make pretty colours and aesthetic effects on the finished tile. This stuff was liberally sprayed in the air in manufacturing plants, where it entered the lungs, skinpores and bloodstream of workers.
\n\nOne of these metals was lead.
\n\nOnce in your bloodstream, lead stays there forever. It can even be transmitted from mother to foetus.
\n\nWhen I was 6, in 1972, someone discovered that 12% of elementary school kids had "too much" lead in their bloodstream. There was a major scandal. I remember that teams of doctors and nurses would come to our schools (very basic back then, we had no infirmaries etc..) and take blood samples from all the kids.
\n\nWalls were black with dusts. Most of it was just clay (but even chemically inert PM10s are dangerous, as we now know). It was a hideous place.
\n\nMy mother and one of my sister still live there. It\'s unrecognizable now. Environmental regulation got the best of all that stuff. With time, they put in a park or two and prettified at least the town center.
', u'post_id': 35325, u'date': u'2017-09-14 20:58:10'}, {u'user_id': 3804, u'title': u'\n\nalberto:\n\nCould it be heightened awareness leading to more ', u'comment_id': 36215, u'content': u'\n\nWOW, that\'s really interesting. This is gonna keep me up. In the US, we assume that thinks are on constant decline... Never framed it this way.
\n\n(I\'m a youngin\')
', u'post_id': 35325, u'date': u'2017-09-14 15:18:55'}, {u'user_id': 4, u'title': u'\n\naquamammal:\nDoes anyone have thoughts on why Allergies are ', u'comment_id': 35837, u'content': u'\n\nCould it be heightened awareness leading to more complete reporting, like with sexual harassment? In my lifetime (I am 51) the air, water and food have become much cleaner and healthier, if anything.
\n\n\n\nWell, yes. That\'s a great business model. As long as people never heal, the money keeps rolling in.
', u'post_id': 35325, u'date': u'2017-09-08 21:24:35'}, {u'user_id': 3804, u'title': u'Does anyone have thoughts on why Allergies are ', u'comment_id': 35813, u'content': u'Does anyone have thoughts on why Allergies are rising throughout the world? As well as following new "treatments" for addressing it?
\n\nBeen following a UK firm Circassia for a while now. They had a couple projects in the pipeline for years, but I don\'t think any have made it to market. http://www.circassia.com/pipeline/
\n\nNot much else though, so it seems that most industry don\'t see a profitable realm outside of symptom mitigation. Which is telling because it might mean that allergies are more misunderstood than we are led to believe.
\n\nIs it the food itself that is causing the reaction, or was it the processing of it? Or some sort of combination of other environmental factors... I don\'t know. Could it have to do with Western diet habits, the 3 meals a day routine, mostly processed carbs, no fasting, lack of short chain fats. Inflammation within the body could be addressed through diet and other lifestyle changes, and dosages of offending molecules aren\'t well understood either.
\n\nApologies for the rambling. Allergies are definitely something I think about since I got tested 3 years ago in the USA with the prick test. The results came back that I was literally allergic to everything, Grass, Dust, Pollen, other stuff I don\'t even remember. My arms were all hives. Fast forward a couple years, through some changes in lifestyle, I actually have mitigated many of the symptoms. Anecdotal, but I\'m very skeptical now of medical establishment\'s ability to dictate what is ailing us, and more importantly, what are some solutions...
', u'post_id': 35325, u'date': u'2017-09-08 15:38:35'}, {u'user_id': 3973, u'title': u"Great! We're just finalizing our travel plans -- ", u'comment_id': 36629, u'content': u"Great! We're just finalizing our travel plans -- really looking forward to it!
", u'post_id': 35958, u'date': u'2017-09-19 16:42:26'}, {u'user_id': 3367, u'title': u"@School_of_Apocalypse Thanks for this proposal! We weren't ", u'comment_id': 36278, u'content': u'@School_of_Apocalypse Thanks for this proposal! We weren\'t able to include it on the formal presentation, but as you can see from the Final Program, there will still be time/space for these presentations. We\'ll talk more over email about other possibilities, and would love to include this work at Woodbine in the future!!!
', u'post_id': 35958, u'date': u'2017-09-14 21:03:29'}, {u'user_id': 3367, u'title': u'Hey welcome to the format! Agreed, definitely ', u'comment_id': 36139, u'content': u"Hey welcome to the format! Agreed, definitely on similar paths. The proposal looks great, we're working on finalizing the program by Friday. Especially in regards to the development of the OpenVillage, space truly plays such a pivotal role in how we function in the world. Excited to further develop this all with you.
", u'post_id': 35958, u'date': u'2017-09-13 14:21:35'}, {u'user_id': 4, u'title': u'Hello Eugenia, thanks for the proposal! You certainly ', u'comment_id': 36101, u'content': u'Hello Eugenia, thanks for the proposal! You certainly got the name right, @School_of_Apocalypse sounds really intriguing.
\n\nI am not involved in making the program, but just wanted to give you a shout out for the creativity. I guess @woodbinehealth and @matteo_uguzzoni would be quite close to your way of doing things...
', u'post_id': 35958, u'date': u'2017-09-12 18:49:48'}, {u'user_id': 3362, u'title': u'\nCooking pot\nStove\nAutoclave (second cooking pot will also do)\nSubstrate ', u'comment_id': 36566, u'content': u'It will take ~2 hours to prepare as well.
Alternatively we can just do an interactive lecture/discussion on mushroom materials.
Best to let me know via text!
Hey Winnie, what would you need for a workshop??
', u'post_id': 34374, u'date': u'2017-09-17 15:45:43'}, {u'user_id': 3362, u'title': u'Hi @liz_biospherex ! The substrate we usually use ', u'comment_id': 34528, u'content': u'Hi @liz_biospherex ! The substrate we usually use is hennep, shredded straw or beech. Supplemented with spent coffee grounds, flour, sugar, perlite among other less common ones. For the materials, Coriolus versicolor and Pleurotus ostreatus have worked best for us.
If you can get your hands on one substrate and one supplement, a small mold, some rubbing alcohol, cooking pot + stove and spawn that is relatively fresh & clean, we\'re good to go. We\'re there only one evening on the 19th, so if people are interested like you say, I can give a demo/workshop then
I\'m curious to see your work too! I\'d like to learn more about cultivation of lion\'s mane and maybe see an installation you\'ve made with Biosphere.
', u'post_id': 34374, u'date': u'2017-08-19 18:09:50'}, {u'user_id': 3798, u'title': u'Hi @winnieponcelet,I would love to hear more about ', u'comment_id': 34520, u'content': u'Hi @winnieponcelet,
I would love to hear more about your projects when you are NYC! Just checked out the link to the biohackerspace in Ghent. Rad! Seems like there is a lot of overlap. I can produce or procure some spawn before you are around and perhaps we could do a little experimenting. I\'ve been using a glove box for my sterile work, which has its limitations, but is adequate for my needs for now. If we are interested in coming up with a demo/workshop during that time, I can find us a space! Let me know. I know this is a workshop people have been interested in... Which materials have you been using with your mycelium structures? The Biosummit looks really cool as well. Looking forward to chatting more!
Sounds good. I can see what our bandwidth is like at that time, but would be awesome opportunity. @liz_biospherex
\n\nLiz has been commercializing it at the moment: http://mane-tain.com/
\n\nPersonally I don\'t feel any stimulating effects like coffee when I consume it. I assume it\'s a really playing the long game in terms of the nootropic effects (if any). The research seems so suggest it\'s like some Panacea. I\'m a bit more skeptical, but I\'m down for a diversity of consumption, so no loss there.
', u'post_id': 34374, u'date': u'2017-08-17 15:07:22'}, {u'user_id': 3362, u'title': u"Oh, cool! I'd also prefer eating. Does eating ", u'comment_id': 34463, u'content': u'Oh, cool! I\'d also prefer eating. Does eating lion\'s mane also have the \'coffee effect\'? We grew some of them as well with the idea of extracting the active elements, but the guy championing the experiments went inactive before we could.
\n\nI\'ll be in Oakland/San Francisco to work with the Open Insulin team at Counter Culture Labs + visiting other hackerspaces from 9-18th and then from 18-26th Boston/New York for the Biosummit.
\n\nWe land in Boston on the 18th and then plan to take the bus down to NY on the 19th. The conference begins on the 21st, so might take a night bus back. So some time on the 19th or 20th is best. If you\'ve got mushroom spawn and a way to work sterile (+-), we can even do a demo/workshop
I was asking the same a few years ago. I used to sport to be more productive in studies, work etc. It does help. And then the same mindset led to a hardline commitment to improve prestations in the sport, always stronger faster and further.
\n\nYet then disaster struck and I got dealt several physical and lasting injuries. Now I have to do sports to stay healthy, mainly physically but also mentally. If I quit or have eg. a sprained ankle or a bad cold, I'll be in pain within the month. Though, I actually enjoy it more now. It's a way of staying well and balanced physically, which is reflected mentally.
\n\nI don't really believe in the productivity thing anymore, it doesn't seem sustainable in the long run.
", u'post_id': 34374, u'date': u'2017-08-17 14:21:03'}, {u'user_id': 3804, u'title': u'Most definitely, we definitely got to meet up. ', u'comment_id': 34461, u'content': u"Most definitely, we definitely got to meet up.
\n\nWe have been messing around with dehydrated lion's mane mycellium. Been shaping them on a CNC machine. Though we would rather eat it! haha.
\n\nDefinitely let's make plans. You are going to tour a couple hacker spaces or what?
", u'post_id': 34374, u'date': u'2017-08-17 13:55:27'}, {u'user_id': 3804, u'title': u"I'm so looking forward to it!!\n\nYeah, movement has ", u'comment_id': 34460, u'content': u'I\'m so looking forward to it!!
\n\nYeah, movement has become a bit more decoupled from "productivity" for my personal liking (though there is a lot of contradictions to unpack there. I\'m constantly asking myself, why do I want to move more? to what end? Maybe these questions themselves are symptomatic of a culture too obsessed with optimization and "progress"... but oh well...
', u'post_id': 34374, u'date': u'2017-08-17 13:54:09'}, {u'user_id': 3362, u'title': u'This is super cool, thanks for sharing @aquamammal ', u'comment_id': 34454, u'content': u'This is super cool, thanks for sharing @aquamammal ! The community at our biohackerspace in Ghent (BE) and in our jobs we\'re experimenting with many of the same technologies: edible insects, black soldier flies, fungi, aquaponics, ... Always with the idea of connecting waste streams, but it\'s been too much work to actually keep recycling things on a regular basis. Props to you for taking it on :-). At our popup lab location, some of our friends did build a mushroom hut connected to a small greenhouse for CO2 and O2 exchange.
\n\nOn your website I don\'t see anything on mycelium materials. Have you looked into that? They\'re pretty new and still in development, but a fun way to recycle waste into building materials & experimenting. It\'s one of our main expertise areas and if you\'re interested, we can share our knowledge on the materials with your community. Some of us are actually heading to New York around 18 September, would be cool to meet up.
', u'post_id': 34374, u'date': u'2017-08-17 13:33:54'}, {u'user_id': 4, u'title': u'We do have a common gym membership (cheap ', u'comment_id': 34438, u'content': u'We do have a common gym membership (cheap in Belgium). The issue is that of motivating each other by sharing activities. Here, we have not been able to go very far. I run; one of my housemates takes long walks. Shared physical activities is an empty set. Maybe this problem will be solved by having 20 people in the house instead of five, when it becomes much easier to match your preferences and time availability with those of at least one other person!
\n\nI did not know Ido Portal. That attitude seems more conducive to art-with-body-as-a-medium than to health care. I\'m happy if I can do 30K a week.
If you join us at the festival, come over and I\'ll show you the Reef prototype!
', u'post_id': 34374, u'date': u'2017-08-16 21:42:19'}, {u'user_id': 3804, u'title': u'Hi Alberto!\n\nBxM, short for benevolentXmachine, is a flexible ', u'comment_id': 34415, u'content': u'Hi Alberto!
\n\nBxM, short for benevolentXmachine, is a flexible unincorporated entity (at the moment). It started out as a media production crew, mainly for Hip Hop, but now it\'s morphed to be hardware oriented. It\'s not the most streamlined operation, since our members do work full time jobs and we have wide ranging interests, it is being structured so that it can be a serious contingent in the near future for our material needs. The Instagram hasn\'t been updated in a while, since we aren\'t very media savvy and have limited bandwidth, but it attempted to document some of our earlier projects.
\n\n\n\n\nIntentional Movement draws upon the current zeitgeist of self improvement through "movement". From more well known public figures like Ido Portal (and the various people that this dude "took inspiration" from) to schools body work/ body awareness like the Feldenkrais Method/ Alexander Technique. Personally coming from a Hip Hop/ Bboy Bgirl background, I\'m more interested in "healthspan" right now. Where it\'s unusual to be able to live a physical lifestyle in corporate urban environments unless you have a gym membership, I guess our group\'s fondness for constantly building structures enables us to move around a lot! So we try and train to maintain full mobility to ensure we are able to perform complex duties.
\n\nYou might have seen this on the site already, but here is an example of a some what major build that would double as "movement" for us. We would like to make our energy expended translate to actual infrastructure, and not solely lifting heavy weights (which we do sometimes no doubt)
\n\n\n\n\nThe Reef\'s vision sounds mad solid! We are all for physical space which then enables new forms of relations/possibilities. Looking forward to seeing more!
', u'post_id': 34374, u'date': u'2017-08-16 02:44:19'}, {u'user_id': 4, u'title': u'Welcome, then, @aquamammal and @liz_biospherex. \n\nWow, that seems ', u'comment_id': 34406, u'content': u'Welcome, then, @aquamammal and @liz_biospherex.
\n\nWow, that seems impressive. I browsed around your website a bit, but of course still have questions! Where can I find more information on BXM, and also on this intentional physical movement you speak about?
Background: I am one of the permanent residents of The Reef, and we are always looking out for easy, low-effort practices that can improve our long-term health and reduce our environmental footprint. Nothing comprehensive like what you guys do, just small things. Right now @noemi is spearheading an effort to reduce our use of plastic packaging.
@alberto the first piece was an introduction, the latter is the \u201cwhy, the conversations that prompted the idea and then going a bit further. It\u2019s always of value to share an update, where they are at this moment and the reason behind the decision to put the project on hold, while at the same time express their intention to re-ignite at a later date. Whatever that time frame may be.
', u'post_id': 35902, u'date': u'2017-09-18 19:13:03'}, {u'user_id': 4, u'title': u'@maria this seems a duplicate of https://edgeryders.eu/t/community-conversations-with-corecarecollective/7011/2 \n\nMaybe ', u'comment_id': 36395, u'content': u'@maria this seems a duplicate of https://edgeryders.eu/t/community-conversations-with-corecarecollective/7011/2
\n\nMaybe delete it?
', u'post_id': 35902, u'date': u'2017-09-16 11:26:36'}, {u'user_id': 3804, u'title': u'\n\njohncoate:\npretty loaded word that triggers set reactions in ', u'comment_id': 36556, u'content': u'\n\nQualifying concepts/ assumptions is half the battle in substantive discussions, for better or worse, haha
', u'post_id': 6403, u'date': u'2017-09-18 16:40:54'}, {u'user_id': 2915, u'title': u'I agree with you for the most part ', u'comment_id': 34167, u'content': u'I agree with you for the most part though I still think in this case putting communism in the title of a presentation or workshop or something similar will require repeatedly defining what you mean by it. Now if that is the intent that is another matter.
\n\nAnd yes change the world but not through requiring a systematized mode of living. We want to show by example that a group of people can come together to accomplish good things and living together accelerates it. But not everyone is going to want to do that. But they will still be productive players.
\n\ndigging deeper into what is meant by communal, communist, etc, if it means living together does it also mean sharing everything? Pooling all money? Is there a point where something is owned by an individual? On The Farm we pooled our money but allowed some personal possessions like clothing and musical instruments. On the bus even the clothes were shared. Nobody owned anything for themselves except maybe a toothbrush.
', u'post_id': 6403, u'date': u'2017-08-08 14:39:36'}, {u'user_id': 3367, u'title': u'@noemi @johncoate Thanks for the questions. We ', u'comment_id': 34106, u'content': u'@noemi @johncoate Thanks for the questions. We talked about this topic in the reflections post we just published. Overall, I think we should aim to be clear with the language we choose, but also recognize that our words will always be co-opted by the right/neo-liberal agenda. In addition, they are inherently loaded words, we are in fact talking about changing the world, and not everyone will be into that. But also recognizing that certain words have become trigger words not because of what they mean, but the meaning that capitalism/nation states/ governments have put into them. Communism being case in point. When most people think about communism, they think Stalinist USSR or other state controlled system. We harken back to the original meaning of the word, most used in examples like early Marx theory, the French Commune, or the communism of the Spanish Civil War. Even now, words like "autonomy", "mindfulness", "wellness" have all been co-opted and likely in the future will be unusable. What I think our mission is is to be explicitly clear about the meaning of words and refuse to let the powers that be taint that meaning. A long path fer sure!
', u'post_id': 6403, u'date': u'2017-08-08 02:31:39'}, {u'user_id': 2915, u'title': u'Should we not then change the title of ', u'comment_id': 34080, u'content': u'Should we not then change the title of this topic?
', u'post_id': 6403, u'date': u'2017-08-07 15:31:17'}, {u'user_id': 3, u'title': u'Hi @johncoate, some of us asked the same ', u'comment_id': 34076, u'content': u'Hi @johncoate, some of us asked the same questions as the collective posted their call here: https://edgeryders.eu/t/revolutionary-care-building-health-autonomy-call-for-submissions-for-openvillage-festival/6445/4
\n\nI understand they now have changed their framing, so maybe @woodbinehealth can update us and this page too? Note that in Festival discussions where we are directing all festival participants this is a pinned page, so one of the first people see when coming in. Thanks!
', u'post_id': 6403, u'date': u'2017-08-07 14:40:29'}, {u'user_id': 2915, u'title': u'I ask because "communism" is a pretty loaded ', u'comment_id': 33986, u'content': u'I ask because "communism" is a pretty loaded word that triggers set reactions in some -many still - people. So if we use it I think we will be explaining it a lot. Thus outside of ideology it isn\'t efficient.
', u'post_id': 6403, u'date': u'2017-08-04 17:15:15'}, {u'user_id': 2915, u'title': u'Does communism no longer mean a Marxist based ', u'comment_id': 33940, u'content': u'Does communism no longer mean a Marxist based government?
', u'post_id': 6403, u'date': u'2017-08-03 22:09:54'}, {u'user_id': 3, u'title': u' ', u'comment_id': 33281, u'content': u'', u'post_id': 6403, u'date': u'2017-07-21 08:16:48'}, {u'user_id': 4, u'title': u'\n\nmaria:\nWe knew healthy eating and nutrition support can ', u'comment_id': 36394, u'content': u'\n\nThis makes complete sense, and we are seeing it everywhere. Others mention, together with information, motivation: by being in touch with people that fight an illness by adopting a healthier lifestyle, people are nudged towards making their own lifestyles a bit healthier. And the illness might be simply... life.
At the end of the day, this confirms the OpenCare result that communities are doing a lot of work in preventative care and lifestyle change.
', u'post_id': 35903, u'date': u'2017-09-16 11:24:48'}, {u'user_id': 4, u'title': u'I am not sure where we disagree. Of ', u'comment_id': 36353, u'content': u'I am not sure where we disagree. Of course extraction on this scale means destruction. Everyone sees it. @eimhin expressed an idea that the way of the trader chosen by Edgeryders ("fraternitas merchatorum", as @lasindias would no doubt put it) is tainted by capitalism, and "you cannot make a white house with white bricks". I agreed with him that the way of the trader might be tainted, but then all ways are, ancient Irish ways and Irish laws no more and no less than others. We need to build a white house, and all bricks are black.
\n\nSo, I advocate looking at any tradition from a healthy distance, and building this house with bricks from the future, rather than from the past.
\n\nSure, happy to talk in person in Brussels. Looking forward to it, in fact!
I personally would really push back on this sentiment @alberto, but I can very much see where you are coming from. Perhaps when I see you in person we can do a discuss more.
\n\nOn here, I would suggest that through certain lenses, the best slash and burners of all time is one way to frame it, but we conceptualize a "non-extractive" homo would take it too far. I would argue that our human social abilities enables us at a group level to shape this world dramatically, but always, ALWAYS, subject to the laws of physics. Slash and Burn was one such technique, and one a planet with less than a million humans, it\'s practice probably weren\'t dramatic because the biomass and ecosystems of Earth could accommodate and might even have anticipated, needed this human phenomenon to occur for other life to emerge. This is not some sort of veiled "destruction breeds creation" American Neo-Conservative agenda, though I can see the overlap, this is one part of a larger history that has been for the most part erased from our collective consciousness. What I would call standard narrative. Slash and burning at different scales/different times produce different results, and it was one of many techniques used. We are also the best reforestors, animal migration pattern enforcers, hunters, seed spreaders, etc etc. America is a place where the story of human\'s actively managing and ensuring huge biodiversity and thriving has been suppressed, this is the story of the Indigenous people\'s who were largely decimated by the arrival of small pox. With the second wave of European immigration occured, they happened upon the most lush forests and largest Bison herds (due to decades of no culling) that this concept of "Pristine Nature" emerged, an environment free of humans (which it never was) that, I would argue very strongly, is retroactively framed by our dominant industrial complexed history to confirm the myth that makes what we do possible: Humans are inherently opposed to the ecosystems that sustain us.
\n\nNothing could be farther from the "truth", and we will definitely get into this, I\'m pretty "Post-Truth" at this point, we choose the narratives we represent, But one major vein of our work here at Biosphere(x) is to recover fragments of these forgotten narratives to counter the notion that "where humans go, megafauna disappear." Causation, Correlation depend the frameworks that inhabit us when we are exposed to this phrase. I would argue that megafauna are still around, though I would love to have seen Giant Sloths and Giraffes outside of central and southern Africa roaming, it is systems, not humans, which has led to the unprecedented extinction events, as well as collapse of microfauna habitats around the planet. Humans are vessels, what organisms inhabit them? Besides the billions of gut bacteria along for the ride @eimhin, I can see certain ideas coordinating millions for certain end goals. It\'s these ideas, which has scaled beyond anything before, which presents to challenges for us. Human Nature is not as malevolent or anti-nature as we see on movie screens or read about in standard narrative fiction/non-fiction/journalism (My opinion is that there is far too few attacks on the systems that drive us to short sighted progressions, we have names for them such as capitalism, patriarchy, totalitarian agriculture etc etc, but these suggest a compartmentalization of the issues, where as the memetic organisms are as multidimensional as you or me, and the problem is they are invisible to our eyes for the most part) Our will to survive and reproduce is not a sin nor commendable, but it\'s universal intra and extra-species. The fact that humans within our culture of industrial complexes has been able to replace like 80-90% of the biomass on the Earth\'s Surface with ones of our choosing is Disturbing to no end~ but the feed back loop that causes this isn\'t inherently part of our nature. If you need examples of human beings who don\'t live in the shadow of our culture and practice ways of life completely integral to their environments, I would consult with anthropologists, since I\'m not one.
\n\nThis is not a call towards "primitivism". There are very real reasons why the stories of humans living as one with nature aren\'t common. They don\'t scale well in the face of disease and military/economic pressures our culture has more than enough of. I would say that\'s the challenge, how to navigate and repurpose suppressed and non-scalable views for the future which really really needs them.
', u'post_id': 35053, u'date': u'2017-09-15 13:59:14'}, {u'user_id': 3804, u'title': u'\n\neimhin:\nThese are centralist, they deny the value of ', u'comment_id': 36342, u'content': u'\n\nHey @eimhin, have you read the book Ishmael by Daniel Quinn?
\n\nYour post deeply resonates with me. I consider myself fortunate to not have developed any jarring health condition, though my early years of consumption would have. It\'s been pretty clear to me through the practice of permaculture and keyline design that these techniques hint at a deeper perspective that human\'s can and probably should be integral in the ecosystem, and to separate the human from the environment is a product of trying to control risk and uncertainty that our agricultural ancestors probably didn\'t know would cause invisible and intangible issues, one of which would be ailments of the microbiome, another I would argue is climate change.
\n\nI do hope to link up with you at the festival. Here in New York, we at www.biospherex.org are practicing at the intersections of food production, cultural relearning/rebranding, and urban rural ecologies. I\'m personally a bit too obsessed with my microbiome, might be a disorder at this point, made worse by the rise of "biohacking" and sensationalist media. More fermenting though, ALWAYS MORE FERMENTED FOODS!
', u'post_id': 35053, u'date': u'2017-09-15 13:26:34'}, {u'user_id': 4, u'title': u'Matt! Please, reconsider. The incentives here are perverse. ', u'comment_id': 36282, u'content': u'Matt! Please, reconsider. The incentives here are perverse. You know how Anthony says that no one is searching for a cure for diabetes because selling the treatment to contain it is too damn profitable? Now imagine the same company were allowed to cause you diabetes, and then to sell you the drug that keeps you alive. You might say "Well, the person is alive and well with the drug, so their health has been restored. All good." But no, all is not good, because the guy with the formula now holds your well-being, maybe even your life, in their hands. Power dynamics has shifted. It\'s like working extra hours to buy the car that allows you to work extra hours so you can buy the car.
\n\nEconomically, with this solution, you can never get to robust commons, because someone is constantly destroying them.
', u'post_id': 35053, u'date': u'2017-09-14 21:35:57'}, {u'user_id': 147, u'title': u'Last week we had a group from ', u'comment_id': 36280, u'content': u'Last week we had a group from Enginhttp://www.ewb-ireland.org/eers Without Borders in to demo their biochar kiln (they also trialled in Nepal for 6 weeks at a permaculture farm that produces coffee Matthias). The week before at Cloughjordan Ecovillage I met Albert Bates, author of The Biochar Solution, (https://www.newsociety.com/Books/B/The-Biochar-Solution)which lists the products, science, and strategies regarding the use of biochar to return us to the known normal levels of atmospheric carbon by the charring of wood, turning the carbon to its recalcitrant form, and thus taking it out of the \'labile\' cycle whereby organic matter rots, releasing it\'s carbon as atmospheric carbon which returns to the earth with rains recompiling organic matter in 12 to 15 year cycles. Biochar stays in the soil as structure, and as Willem Reich points out in the Bion Experiments, when you add potassium to char, with bacteria, you get the breakdown of said char into vesicular structures which form the basic food stuff for bacteria and microorganisms, hence biochar is both a form of capturing carbon, and a super food for soil biology.
\n\nSo yes, I agree, regenerative approaches are there in evidence, and can be developed. Biochar also can serve as a sand substitute in concrete and has a number of superior properties, including that it floats, for example. It can be used in paint, when mixed at 1% to 99% silage it reduces methane output in cattle by 35%, and improves digestion and immunity, reducing need for antibiotics, used as bedding it suppresses ammonia formation so no ammonia smell, it can be used with plastic in recycling composites, and as a paint, among other things. Fascinating stuff.
\n\nI find that inoculation, or as Albert calls it, \'microbialisation\' of the char, works well with digestate from our biodigestor. All that surface area means lots of oxygen and so the anaerobic bacteria die off leaving a foodstuff for the bacteria in the compost heap where we keep the char for a couple of weeks before putting out on the soil. We hope to go no-dig next season, with the six inch cover layer in biochar altogether.
\n\nPartners to the project include DTC , the development technologies in the community research group, based in ireland at DIT, as one node of a global network. They have no pilot site for their technologies. [http://www.dit.ie/dtc/]
\n\nAnother is WWGS world Wise Global Schools, the post primary education partner to irish aid. They are looking for a site to teach dev Ed to teachers , young people, and life long learners.
http://www.worldwiseschools.ie/
The third partner is the Irish Heritage School who work with placement programs for service learning in a network of universities from the US, EU and Australia. Faculties include community development, anthropology, archaeology , heritage, and sustainability. [http://irishheritageschool.com/]
\n\nI think it\'s a good setting to do things. We are also working with Tom Stewart on the Pilgrims and Pathways bid as part of the Galway 2020 capital of culture thing, hence primed for unMon-esque type things.
\n\nRe-Gen all the way. Millennials are not as useless as the intergenerational vampirist make them out to be
St Patrick himself was a slave. The colonialists shipped women in their thousands from Galway bay. Today people put their creative attention into processes that enrich others without say in conducting the value created.
\n\nMy great great great grand father on my father\'s side was overseer at the workhouse in this town. In that direction the castle and Demense have played a founding role in their survival this last three hundred years. On my mother\'s side, the family of the \xc9ile (Claim) of Laois, the Finlays, or Finliath, and the medical family of Callanan, Ui Chuilen\xe1in. It is perhaps an accident of chance that the current head of the Opus Dei is an Ui Chuilen\xe1in, as the philosopher king C\xf3rmaic Ui Chuilan\xe1in was the Bishop of Cashel before him in the 9th century. The Church at that time was hereditary, primogeniture, passing to the eldest son, as clergy still had the right to marry. Apparently it was the strength of the Irish church that was the cause of the decree forbidding marriage in the second lateran council of the mid twelfth century.
\n\nMy g-g-great grand father would have overseen lists I have dug out of a century and a half of pigeon shit in the corner of an upper floor room, burnt out just last month, at the workhouse here in Birr back during the famine. They detail the imports, tea and sugar from Calcutta, sweet cream, grain, cloth, and so on. There was a cape buried in there too. No ordinary garment, though partly decomposed. i wonder was it his? Was he a good man? ... My father would march down the hall, enter, draw the curtains sharply, open the three stacked windows methodically, one by one, then tug the covers from the beds into the hall, saying in a measured tone, "your breakfast is on the table, there\'s Work to be done."
\n\n...
\n\nC\xf3rmaic was a man who caused the Roman Catholic Church great difficulty in his interpretation of the faith as he saw it lived by his \'flock\'. His people were clergy, and were afforded the benefits of the church as the fruit of their labour, a labour in good Faith. He could not be argued. Odd to think the lengths to which an institution might go to rid themselves of a particular bloodline, and the scale of time they gather into their reckoning!
There were also the O Dempseys and the L\xe1lors, of which was one Patt Lalor, repeal MP, father to James Finland L\xe1lor, a man always sickly, who spoke and wrote against the tithes and markedly stirred revolutionary foment in his time. The tithes were payments extracted by the clergy from farmers and tenants, 10% of their earnings paid in kind by a metric not of their own making. The people squeezed, revolted.
\n\nIn Ireland the land is important, I know it, still, and deeply. I respect that we live of it, that soil, as you call it, is ancestry. Science says much the same, life lives, and dies, and this brings new life. You walk atop all you once were, all you are, all within and without of You who live eat and breath it, I get that. Most forget, even here, most forget. I forgot, and it damn near killed me.
\n\nWithout soil there is no life, it is your ancestry , if you deny it, you deny your existence, and as such will cease to exist. There is no future that disrespects it\'s source of life.
', u'post_id': 35053, u'date': u'2017-08-31 23:12:03'}, {u'user_id': 5, u'title': u'\n\nalberto:\nThe Chernobyl radioactive disaster area \u2026 has thriving ', u'comment_id': 35156, u'content': u'\n\nThat means radioactive waste is an effective tool for ecological restoration I can imagine a new movement of somewhat radical environmentalists \u2026 scary haha \u2026
But seriously: interesting discussion here! I largely agree with Alberto that there\'s an ecological guilt of humanity throughout history \u2026 it just wasn\'t that bad while people didn\'t have all this tech to amplify their actions.
\n\nOne new thought: what\'s relevant is only the net effect on nature. The good (repair, cleanup and restoration) can always offset the bad, except for cases of species extinction. So while humans destroy parts of the earth beyond recognition, other humans may find ways to create ecological diversity in other parts beyond what nature could do if left alone. Think ecosystem restoration work, and then something on top: ecosystem creation. If the net effect of all humans is positive for ecological diversity, no reason to grieve about humanity\'s very existence on Earth.
\n\nThat is of course far off, but I found it an interesting approach to the problem. Because it\'s just unrealistic to regulate everyone into not harming nature. The same applies to climate change: if a part of humanity would care to (profitably!) remove the CO2 from the atmosphere that the other part of humanity is releasing there \u2013 problem solved.
\n\nI\'m not yet done with thinking how that could be done practically, mainly saying this as a new way to think about countering ecological destruction. But it\'s not completely unfeasible: think CO2 concentration technology and lots and lots of seawater greenhouses in desert areas. The CO2 enriched air inside the greenhouse makes the plants grow faster (which is the most important property of modern greenhouses, but currently done with a natural gas burner). The products are fruits, nuts, vegetables, and biomass, which would be partially charred and partially composted to create long-term stable soil with lots of carbon in it for even more such greenhouses \u2026
', u'post_id': 35053, u'date': u'2017-08-31 17:15:30'}, {u'user_id': 4, u'title': u' \n\n\n\neimhin:\none cannot build white houses of black ', u'comment_id': 35150, u'content': u'\n\n\n\n
Oh, I don\'t think we are doomed to selfishness and extractiveness. In fact, we have made massive progress on so very many fronts. I just think such progress, and most of the progress to come, will come from looking ahead. I am just saying there are no white bricks. Our hands are covered in blood. Our tribe elders have killed and maimed and enslaved and raped and messed up the planet as a matter of routine, whatever the tribe.
\n\n"In ancient Ireland, female slaves were so plentiful and important that they come to function as currency" (source). That does not mean Ard Aire were not high carers, as you say, but it does raise the question of caring for whom. Similarly, 5th century BC Athenians had an advanced democracy and was based on slavery. In either case there is no contradiction, because Irish and Athenian slaves were not considered to be people.
\n\nDid I ever tell you I used to be a professional folk musician? I do understand the pull of tradition, of rootedness, of your place in the world. But I refuse to let myself be blinded by it. Humans, I want to believe, can still build a non-extractive civilization. But its bricks will be black, almost without exception, and there will be blood in the hands of the builders.
', u'post_id': 35053, u'date': u'2017-08-31 16:04:47'}, {u'user_id': 147, u'title': u'Ugo Mattei, a compatriot of yours , ', u'comment_id': 35134, u'content': u'Ugo Mattei, a compatriot of yours , writes about an ecological legal order. The Brehon legal tradition, prior to its abolishment via the tanning case, was an ecological legal order, where the trees were divided into three classes in the forest, the nobles, the commoners, and bushes, they had status, based on their function as preserves of the life of the forest upon which the people depended. In a short few hundred years of common law the great forest was levelled to smelt iron ore for weaponary and to build the ships of colonialism. This push came from more ancient compatriots of your homeland, it is perhaps not surprising that you share a certain fatalism.
\n\nWe live by our enstructured values and beliefs.
\n\nIn the present we see efforts being made via the common legal tradition to revert to common legal practices. It is not a yearning for the past, but a recognition that the future without change is grim death at scale. It is also a recognition that the separatist extractive and self interested ego, in the pursuit of one or another form of power, is a prevailing feature of the detriment.
\n\nOnly a fool denies that he needs to eat, and that the food must come of the land, and that the quality of each are important to one\'s well being and survival. That said, the world has ample evidence these days of such foolishness.
\n\nIn the Daoist tradition the sage immortal is often found riding backwards on a donkey through the mountain villages. The children laugh and ask, \'why are you travelling, facing backward on the donkey?\' - "It is not me", replies the sage, "but rather that the donkey does not know where it is
going".
To know where one is is the key to taking appropriate next step. To know where one is, one must know how things have come to create the conditions of the present. Things ever come into being by the same process and as such cycles can be observed in the evolution of things. And so, as such, it is wisdom to look backward, as one moves forward, the ego is a donkey, it does not know where it is going.
\n\nCare beyond the self beyond the family or band is hardly a modern invention, though I appreciate where you are coming from. The Avalokitsevara details the 37 principles of the bodhisattva, an ancient acknowledgement of the spectrum on which all things find themselves. To one side pure nefarious self interest, to the far extreme on the other of bodhisattvic altruism. The distinction is one of practice, by which one comes to disidentify with personal as self, and take responsibility for all
of creation, through the lived medium of self; that is, for practitioners. For the unpracticed life there is apparent separation in what is inherently unified, and an evolution from there of Lila, the will to live play breath bleed and die unto new life.
Either way for us we want to live, with some degree of wellbeing, and this requires basic sustenance. You have posed a fatal argument, basically that our nature is unchangeable and that we are fucked in the greater scheme of things, and while I agree to some extent, I can choose how I live. It is not by personal choice that I experience the breaking of the normal bodily function, near death, healing, and the change that that requires. I wish for others that they see the problem now as it is, and choose to heal, without the global invention of dire necessity. In the meantime, conscious of the prevailing stupidity, it is wisdom to be prepared, and practiced in resilience on behalf of those short of insight.
\n\nGood luck to us all.
', u'post_id': 35053, u'date': u'2017-08-31 10:48:11'}, {u'user_id': 4, u'title': u'You seem to be doing good work, @eimhin, ', u'comment_id': 35118, u'content': u'You seem to be doing good work, @eimhin, and it\'s great news that your health has improved so much. I wish you continued process along this path, or any other that you may choose.
\n\nI cannot speak for Edgeryders, or anyone else really. But I find it hard to believe that any human cultural tradition can lead to living in harmony with nature. We belong to a species that has driven the megafauna to extinction wherever it touched land \u2013 and we are not speaking of modern adventurers with guns, but of hunters-gatherers with spears. That, according to the latest interpretations of archaeological evidence, existed in an almost constant state of warfare to keep density below one person per square mile (reference one, reference two). That has an innate preference for in-group individuals ("those like us, not those others"), demonstrated by research on children as young as six months (this is the biological kernel of racism and discrimination \u2013 and we all have it). This is rape, not harmony. Extraction, it seems, is at the very core of our species\'s success. Non-extractive homo have gone extinct. We are the descendants of the best slash-and-burners.
\n\nAs for ecology, nature thrives wherever man leaves it alone. The Chernobyl radioactive disaster area, just about human technological folly at its worst, has thriving wildlife, with lynx and bears and bisons and wild horses (wild horses! In Europe!). This has led elder ecologist Stewart Brand to suggest that mega-cities are the greenest solution for hosting homo sapiens. If you love nature, he says, set her free... of your presence.
\n\nThis in no way diminishes the usefulness of what you are doing. Of course there is much practical knowledge to be gathered from living from the land. But it seems more likely that care beyond the family and the band is a modern invention. I will look for it in the future, not in the past. Good luck to both of us!
', u'post_id': 35053, u'date': u'2017-08-30 23:13:57'}, {u'user_id': 147, u'title': u"The title of 'Getting your shit together' comes ", u'comment_id': 35054, u'content': u'The title of \'Getting your shit together\' comes of the Celtic tradition wherein the place in society was a position of \'care\', a word which was also the word for an adult - Aire.
\n\nA child who needed care only, was a boh, a mid-boh needed care but also cared for the animals as a herder, and for the land by collecting the manure for the winter pasture. At this time the land measure unit translated to "enough grass to feed three cows". When the mid-boh had collected enough manure to fertilize the soil of the winter pasture, and \'enough grass to feed three cows\' then, and only then, were they granted stewardship of land, cows, and were given the right to marry eachother, whereby their duty of care was extended to the whole Chlann, and they became an adult, Aire, a carer.
\n\nThe Ard Aire, were the elders, \'high carers\', who passed on the rites of the mill, forge, the technologies of the time, and the sacred rites of inauguration of settlements, coronations, and ceremonies of the sacred and celebriate.
\n\nIn this society, this culture, of the land \xc9ri\xfa of the western seaboard, one\'s place in societal station was based not on extraction, but upon the extent and number to which care could be extended by the nobility and ultimately the minor king, of any given Tuath, or parcel of land, and it\'s Chlann, or family.
', u'post_id': 35053, u'date': u'2017-08-30 11:26:06'}, {u'user_id': 3367, u'title': u"@iamkat Thanks for this proposal! We weren't ", u'comment_id': 36277, u'content': u'@iamkat Thanks for this proposal! We weren\'t able to include it on the formal presentation, but as you can see from the Final Program, there will still be time/space for these presentations. So we hope that you can still come and share your thoughts with the community! Looking forward to meeting and let us know if you have questions/needs for a presentation!
', u'post_id': 33560, u'date': u'2017-09-14 21:02:13'}, {u'user_id': 3362, u'title': u'@nadia is curating day 3 of the Festival ', u'comment_id': 35787, u'content': u'@nadia is curating day 3 of the Festival here. Maybe you can share your thoughts in the thread to figure out what would be a good way to contribute?
', u'post_id': 33560, u'date': u'2017-09-08 12:42:06'}, {u'user_id': 2362, u'title': u'Hi @winnieponcelet - I could help out with ', u'comment_id': 35404, u'content': u'Hi @winnieponcelet - I could help out with a workshop on infrastructure - the ECH stuff is particularly focussed on community-scale interventions at the nexus of water, energy, food and waste. Does this fit what you\'re thinking of doing in the community space? In terms of Vital - we could do a forum theatre or an DIY Chemistry extraction perhaps?
', u'post_id': 33560, u'date': u'2017-09-05 06:50:43'}, {u'user_id': 2362, u'title': u'Hi @noemi! Thanks for your thoughts! Great to ', u'comment_id': 35402, u'content': u'Hi @noemi! Thanks for your thoughts! Great to see @lucy \'s contribution too - very pertinent and she and I are already in conversation for other projects.
\n\nMy initial group did create two exhibitions from the Vital processes - is that what you mean? And I created two exhibitions from the overall Vital | Flows project such as this one at SPACE in London. Is this what you mean?
', u'post_id': 33560, u'date': u'2017-09-05 06:47:52'}, {u'user_id': 3362, u'title': u"Hi @iamkat , thanks for the session proposal!\n\nI'm ", u'comment_id': 33840, u'content': u'Hi @iamkat , thanks for the session proposal!
\n\nI\'m interested in doing a workshop on infrastructure. We\'re changing our labspace so I am curious how it could help us in designing a new community space. I\'m wondering if others also like the idea. @nadia @matthias ?
\n\nWe want to go with interactive formats for the sessions, so that we spend our time during the festival in a generative way. In that light, a demo on Vital would fit perfectly. We\'re thinking to install a little lab at the festival to do some citizen science, so we could do some analysis there as well.
', u'post_id': 33560, u'date': u'2017-07-31 12:11:13'}, {u'user_id': 4, u'title': u'Wow! Can you say more about "good results ', u'comment_id': 33591, u'content': u'Wow! Can you say more about "good results in terms of infrastructure outcomes"? What did they build?
', u'post_id': 33560, u'date': u'2017-07-26 12:43:04'}, {u'user_id': 3, u'title': u'@iamkat welcome back! You definitely need to talk ', u'comment_id': 33579, u'content': u'@iamkat welcome back! You definitely need to talk to @lucy , the way you two problematize the issue of sustainability hits home and potentially for more people. Building on her input, we have gotten as far as dreaming up a debate around sustainability and funding.
\n\nKat is there a way to organise your contribution around the exhibition on food, analysis and the aesthetic experience ? Did your initial group made it that far? I think we\'re at the point where its worth thinking how the event can practically add to the work done, in addition to showcasing. @winnieponcelet is curating the citizen science theme, so he\'ll know best.. just my thoughts.
', u'post_id': 33560, u'date': u'2017-07-25 17:10:32'}, {u'user_id': 3367, u'title': u"@shajara Thanks for this proposal! We weren't ", u'comment_id': 36276, u'content': u'@shajara Thanks for this proposal! We weren\'t able to include it on the formal presentation, but as you can see from the Final Program, there will still be time/space for these presentations. So we hope that you can still come and share your thoughts with the community! Looking forward to meeting!
', u'post_id': 34108, u'date': u'2017-09-14 20:58:41'}, {u'user_id': 3374, u'title': u"Hey @noemi, I don't believe this session is ", u'comment_id': 36131, u'content': u'Hey @noemi, I don\'t believe this session is happening because it never gained traction. Thank you though for reaching out.
', u'post_id': 34108, u'date': u'2017-09-13 12:02:08'}, {u'user_id': 3, u'title': u'Guys, is this session happening? Just flagging it ', u'comment_id': 36062, u'content': u'Guys, is this session happening? Just flagging it in case the ball dropped.
@Shajara we are closing the program this week so please keep us updated. And see you at the tweetstorm I hope!
@shajara Thanks for the post. These ideas sound right in line with what we\'re trying to foster at the festival. I think our program is full for complete sessions, but I\'d love to chat more about your ideas around creating mental health care models, something we @woodbinehealth are very involved in. We have tried a few models, such as informal healing spaces, but we are looking to implement more formal "empathy circles" within Woodbine (https://vimeo.com/165280759). I hope you are planning on coming to the festival, I think your voice and experiences would be so beneficial. Maybe we can talk over Skype about more details, please email me at woodbinehealth@gmail.com! Be well and thanks for sharing.
', u'post_id': 34108, u'date': u'2017-08-12 14:04:12'}, {u'user_id': 3804, u'title': u"Hi @concrn, \n\nThis is really intriguing. I'm based ", u'comment_id': 36217, u'content': u'Hi @concrn,
\n\nThis is really intriguing. I\'m based in NYC, and one of my main organizing activities here is with a local Cop Watch team. The movement has been getting a bit more press for the past handful years due to sensationalist news cycles and I genuine growth of grassroots teams popping up around the country.
\n\nMy team is around 6 years old, and our main activities are consistent "patrols" in which we film all police encounters with the public if we happen upon them, and the vast majority is handing out "Know Your Rights" fliers in a couple different languages depending on the neighbor make we are in that night.
\n\nCop Watch is a form of community self defense, in which one goal is to raise the level of awareness in the community about their rights and options which encountering the police, and leveraging the ubiquity of digital cameras so that people everywhere can record police, not just to catch misconduct or brutality, but because it\'s perfectly legal to film.
\n\nThat being said, with the past 3 years, we have been hitting a wall in terms of the limits of our efficacy, because in our consistent patrolling, we often come across instances in the community that don\'t involve police but require some sort of intervention, whether it means homelessness, interpersonal or mass violence, injury, public intoxication etc etc. I guess we are coming post-"Who Watches the Watchmen" phase, where we are asking ourselves, what is our role? Is it just to enable people to operate within legal frameworks? or should the hours and energy we expend week after week be do towards visions of a world where legal frameworks are obsolete? (very lofty) What are the practical steps before then.
\n\nOne of the first programs we are implementing is a rapid response network, right now it\'s just through a big texting group of people who have opted in, which in itself presents severe scaling issues, which in turn, limits it\'s usefulness. We don\'t really have the expertise to design an app since most of our team aren\'t programmers. Our hope with this was to intervene before the state got involved in community affairs. I would be curious about your app, company, and business model, and maybe we can do something in New York, since we have like 6 cop watch teams around the city.
', u'post_id': 728, u'date': u'2017-09-14 15:35:38'}, {u'user_id': 3390, u'title': u'Hi Noemi,\n\nWe lead by example as well as ', u'comment_id': 11811, u'content': u"Hi Noemi,
\n\nWe lead by example as well as train the community members to become responders. Feel free to call with more questions! I'd love to chat 415-881-8278
\n\nJacob
", u'post_id': 728, u'date': u'2016-09-06 19:30:58'}, {u'user_id': 3, u'title': u'Training communities', u'comment_id': 8935, u'content': u'Hi @concrn, welcome! I\'m Noemi, and my own cases of\xa0irrelevant (at best)\xa0or aggravating\xa0(at worst) situations appearing in connection to system brutality are listed\xa0here.
\n\nI like your solution - training communities\xa0to compassionately respond to their own crises before police get involved. \xa0How do you do it? Is it through your own example or do you have activities to teach citizens that?
\n\nIn Bucharest there is a long time organisation working with drug addicts and sex workers on the streets, and they are so hung up in the very basic aid of providing IDs for these people or getting them into the social security state service provision, that they can\'t really do anything else, that\'s how hands on\xa0and exhausting\xa0that task is.\xa0And while they could need help, it\'s very time consuming to train others how to deal with people on this dramatic edge - because of the emotional investment and very specific set of skills needed.
\n\nThey do, however find new ways of helping those in need, but incipient - car wash social businesses, or a social restaurant providing some jobs. Anyway, titanic work!
', u'post_id': 728, u'date': u'2016-09-02 11:53:29'}, {u'user_id': 3804, u'title': u"\n\ngenghisaloe:\nI'd like to learn more about what people ", u'comment_id': 36214, u'content': u'\n\nWow GenghisAloe, salute! I would be super interested to see some of your libraries. We are doing some apartment aquaponics using an NFT system I would assume is a bit similar to you guys. I definitely want to do more with Arduino\'s to take data. Do you guys have water composition sensors in the array? I tried to test water quality at the beginning, but soon gave up. I assume our system is pretty stable, because no massive die offs, but alas, I don\'t really know know~ haha. Whack stuff about PH meters is they have to be calibrated every so often, as well as all the other types of instruments...
\n\nSide note, have you guys looks into any of the vertical hydroponic techniques, I\'m thinking of name brands such as Zip Grow towers from the US.
', u'post_id': 880, u'date': u'2017-09-14 15:17:20'}, {u'user_id': 3707, u'title': u'Hey guys,The idea of building a geodesic dome ', u'comment_id': 34225, u'content': u'Hey guys,
The idea of building a geodesic dome in Morocco would be a dream! I guess one of the main things that I\'d noticed with off grid use of IoT devices was that until there\'s very regular power supply, the cutting out of power meant that the integrity of the database was lost, so the timing was all off. One way around it had been using real time clock modules on the Raspberry Pi, kinda like a CMOS battery on a pc.
I must read up more on what you\'ve all been up to, I\'m juggling working on a project for the Science Gallery involving an Arduino and VJing at the moment
A belated welcome from me too, @genghisaloe. I have two points to make.
\n\nFirst: @damiano is also involved with a startup making aquaponics under a geodesic dome. I already told him it would be quite spectacular to build one as part of our upcoming deployment in Morocco (to be announced, just be patient for a while longer).
\n\nSecond: where this IoT stuff meets citizen science is in projects like the Smart Citizen Kit, rolled out initially in Amsterdam by the Waag Society. It mostly failed. Citizen data turned to be unreliable. Data quality was too low; specifically, comparability across different data sources was an issue. This is not an ethical issue per se, however.
', u'post_id': 880, u'date': u'2017-08-03 15:18:12'}, {u'user_id': 3362, u'title': u'Dream project', u'comment_id': 7725, u'content': u'Welcome @GenghisAloe ! I\'ve heard good things from @Bernard
\n\nI can testify the Grow Dome is a dream of many urban farming/vertical farming enthusiasts here in Ghent (BE). Impressive!
\n\nYour skills with these devices is pretty valuable to citizen led science projects. Are you involved in any other initiatives at the moment?
\n\nAlso, when I read IoT, I immediately think of user data. @Alberto just made a session proposal for the OpenVillage festival on ethics and data protection.
\n\nWould such a session be relevant for you?
', u'post_id': 880, u'date': u'2017-07-10 14:02:33'}, {u'user_id': 3, u'title': u'The second put the tweet on the ', u'comment_id': 36203, u'content': u'The second put the tweet on the sheet and tweet it on Saturday - or schedule it to go out from your account on saturday (i.e. i\'m using buffer.com). Of course you can write your tweets outside the common sheet, but seeing what others are planning is more social - also you can pick up tweets from there already, or just get inspiration, or translate others into a difft language.
Feel free to use what works best for you, and looking forward to catch up!
', u'post_id': 36125, u'date': u'2017-09-14 13:00:23'}, {u'user_id': 200, u'title': u"Thanks @noemi and @nadia. I'm not clear about ", u'comment_id': 36189, u'content': u'Thanks @noemi and @nadia. I\'m not clear about putting tweets in the spreadsheet. Is the point to make a tweet then put it on the sheet; or to put on the sheet and tweet it on Saturday; or to put it on the sheet and have it (somehow?) automatically tweeted?
', u'post_id': 36125, u'date': u'2017-09-14 09:36:29'}, {u'user_id': 3, u'title': u'Yess! Ping @alex_levene @asimong @markomanka @amelia @liz_biospherex @patrick_andrews ', u'comment_id': 36183, u'content': u'Yess! Ping @alex_levene @asimong @markomanka @amelia @liz_biospherex @patrick_andrews @albertorey @breathinggames @chrisjcook @maria @costantino @melancon @shajara @bernard @michael_dunn!
\n\nYou probably got the notice on email already, just making sure you put it in your calendars <3
', u'post_id': 36125, u'date': u'2017-09-14 08:43:58'}, {u'user_id': 3686, u'title': u'This looks great. I was thinking that podcasts ', u'comment_id': 36121, u'content': u'This looks great. I was thinking that podcasts are a great way to reach an audience. it also allows people to multi task in ways that reading and watching don\'t.
\n\nIm sure you have heard of these guy already but id love to hear an interview between you and cadus. Who built a mobile training hospital that they took from Berlin to Rojava. so inspiring.
\n\nI will listen to this today. good work.
', u'post_id': 35814, u'date': u'2017-09-13 09:21:52'}, {u'user_id': 3, u'title': u'Hi @mihi, missed this Are you coming to ', u'comment_id': 36038, u'content': u'Hi @mihi, missed this
Are you coming to the OpenVillage festival about care in october? If so, that would be a good opportunity to approach this guide systematically, as many in the community are figuring out ways of preventing burnout and depression in a support community.
Alan\'s story of how one can take effective action as an externality of having gone throuhg the rabbit hole is pretty amazing.
', u'post_id': 622, u'date': u'2017-09-12 11:38:38'}, {u'user_id': 1820, u'title': u'Undisclosed content ', u'comment_id': 34050, u'content': u'Undisclosed content', u'post_id': 622, u'date': u'2017-08-07 10:53:03'}, {u'user_id': 1935, u'title': u'so is it a community or a company ', u'comment_id': 36002, u'content': u'so is it a community or a company ? who will put the rules or the document or so , in other words who is "us" in this.
\n\nand how is the progress going, you mentioned that you were in contact with some people from the Government ? or from the presidency office ? and they refused the idea of an island due to strategic reasons, but they are open to other locations, like what ? and how is the communication going, I am very curious to know, is it between just you and may be some young people as an initiative with them or is it through other companies or organizations ?
', u'post_id': 35613, u'date': u'2017-09-11 20:20:24'}, {u'user_id': 3887, u'title': u'when a company have an employer against ', u'comment_id': 35829, u'content': u'when a company have an employer against instructions , company will end of contract for this employer and exit him
the same we will do
The person who wants to join us will sign a document with the necessary instructions and list of violations
When the person against instructions, the contract with the person will be terminated and his / her work will be terminated within the community and will become a visitor only and has no right to work in our community
I don't get it! I could just move in. Set up a tent somewhere, and refuse to leave, points or no points. Does that mean you have some kind of police to enforce your point system, and make people leave by force if they don't comply?
", u'post_id': 35613, u'date': u'2017-09-08 18:31:04'}, {u'user_id': 3887, u'title': u'@alberto Really its a great Questions and i ', u'comment_id': 35810, u'content': u'@alberto Really its a great Questions and i will answer for it
First : why HR choose inhabitants ??
Because HR team can choose individuals based on:
1- Ambition
2 - Ethics
3. Innovation
and this to avoid the negatives produced by non-qualified individuals
\u064dSecond:how would you keep out people that you do not like?
Solution is the points system:
Everyone on the island has a number of points
If a person commits one of the wrong behaviors or against instructions
A number of points will be deducted from the balance based on the list of violations
If a person reaches 0 points
Thanks are given to him for the time he spent with us and he will leave community
Third : What is stopping me (or anyone) from simply moving into the island?
No one can stop you to moving into island but you can visit it as a visitor not a member in community
the different is no one outside a community can work in island or invest on it
Hello @M.Elshafey! This is very impressive, but I am not sure how you can do this with so much top-down control without breaking it. A town whose inhabitants are selected by an HR committee sounds more like a company than like a town. Also, how would you keep out people that you do not like? What is stopping me (or anyone) from simply moving into the island?
', u'post_id': 35613, u'date': u'2017-09-08 10:56:48'}, {u'user_id': 3887, u'title': u'\n\njohncoate:\nThe island looks like incredible diving offshore and ', u'comment_id': 35713, u'content': u'\n\nthere is no town in island .. its Only the land of sand
and we need to make a Create an innovative life in island with a innovation people
There are many areas for modern investments within the island
There are more than 10 islands in Egypt without people living on it
And the nature inside the island helps to calm and relax and good work for innovators
The island looks like incredible diving offshore and a lot of beach bungalows and resorts and the rest looks like bare rock. Is there a town on the island? Where would 1000 new people live if not connected to the resorts?
', u'post_id': 35613, u'date': u'2017-09-06 20:43:23'}, {u'user_id': 3887, u'title': u'sure you are right for that I ', u'comment_id': 35628, u'content': u'sure you are right
for that I am now looking for support from nonprofit organizations in supporting in this idea
But the idea of FSP is more different from my idea in several subjects and the most important subject is
I do not want to create a Closed society but I want to create a creative environment that helps innovators and innovators
And produce a number of innovative projects that help a better life
As I feared 
In that situation, you might want to adopt the voluntary migration strategy of the Free State Project instead, because it needs no government cooperation at all. Own governance structures like the membership card might have to be adapted a bit, though.
Wikipedia has a nice summary. Basically the FSP intends to "take over" one location by amassing people with similar intentions and initiatives there. This happens crowdfunding-style, with a threshold. So they first collected people who promised to move if 19,999 people promise the same. This lastest from 2001 to 2016. Now that the threshold has been reached, these 20,000 people are expected to make good on their promise and come to New Hampshire.
', u'post_id': 35613, u'date': u'2017-09-06 12:53:58'}, {u'user_id': 3887, u'title': u'Really thanks for your support @matthias you can ', u'comment_id': 35621, u'content': u'Really thanks for your support @matthias
you can Imagine what one creative entrepreneur can do ??
but sure you can\'t imagine that 1000 creative entrepreneur can do when they meet and live together in one place like island
I think they can change the world
this is my vision to my idea
and i trying to make co-operation with government but no response
(Moved your post to its own topic so it can attract more attention. Feel free to adapt the title, which I had to invent.)
\n\ni love this idea, its sheer scale compared to the independent house projects we are looking into, and that you have come so far with it already. What I don't get is, how can you do this on the island? Do you need or have any government cooperation, or is it just about moving there individually for the 1000 selected people?
", u'post_id': 35613, u'date': u'2017-09-06 12:28:44'}, {u'user_id': 3613, u'title': u"Yeh, I think there's a pivot point for ", u'comment_id': 35978, u'content': u"Yeh, I think there's a pivot point for change there... how do we envisage some practical ways to start to reveal our assumptions - the unseen structures that shape our world? Until we find tools and ways to make them more evident it'll be so much harder to work with them. I'd love to spend some time developing practices and tools for that kind of work. And I wonder whether there might be ways - like experiences crafted for that specific purpose or spreading 'ear worms', like songs that get stuck in your head - that challenge old core beliefs so that they unravel and create the space for healthier more collaborative core beliefs can emerge.
", u'post_id': 35561, u'date': u'2017-09-11 12:22:20'}, {u'user_id': 3613, u'title': u"I warned early on, I'm big into Illich! ", u'comment_id': 35977, u'content': u"I warned early on, I'm big into Illich! Can't promise there won't be more : /
", u'post_id': 35561, u'date': u'2017-09-11 12:17:05'}, {u'user_id': 4, u'title': u'Wow, you guys are really into Ivan Illich! ', u'comment_id': 35840, u'content': u"Wow, you guys are really into Ivan Illich! I looked him up, he looks to have been a modern thinker. I never read his work, but have been exposed to some of the key concepts exposed in his Wikipedia page:
\n\nCounterproductivitity => negative feedback (originally Wiener, later all complexity theorists)
Specific diseconomy => iatrogenics (Taleb)
Radical monopoly => winner-takes-it-all (a VC near you)
Conviviality => no specific word I know. People don't talk much about is, except anthropologists.
Thanks for the thoughts. Love Illich\'s work, was very transformative to me during school. I really appreciate your emphasis on the structure of organizations and the myriad ways that "soft" structure, like language actually determine the power dynamics. I think for us, our language is very important, because it allows us to connote visions that are much larger than our words. As I write this, the US seems to be in a world of chaos, more present daily. Multiple "largest" hurricanes ever are battering the southern coast, our politics is a joke, and daily people are retreating into themselves, an escape from the world. I think that language does have the power to help us address these assumptions that lie beneath our thoughts, and it is my hope that by elucidating the insanity of our assumptions, we can begin to think of new ways of being.
', u'post_id': 35561, u'date': u'2017-09-08 13:50:49'}, {u'user_id': 3704, u'title': u"ok, good... except, I don't do any ", u'comment_id': 35967, u'content': u"ok, good... except, I don't do any 'personal' tweeting... but can go via fb.
", u'post_id': 35894, u'date': u'2017-09-11 08:02:49'}, {u'user_id': 3, u'title': u'@owen is updating the festival site today with ', u'comment_id': 35962, u'content': u'@owen is updating the festival site today with location etc and will get it ready for the tweetstorm this Saturday - have you seen this announcement @rachel?
', u'post_id': 35894, u'date': u'2017-09-11 07:22:54'}, {u'user_id': 3704, u'title': u'help shape it, ok\u2026but maybe this is still ', u'comment_id': 35923, u'content': u'help shape it, ok\u2026
but maybe this is still early days for announcing??
Meeting points and day venue: will be announced soon.
Hi Rachel do you mean festival.edgeryders.eu?
', u'post_id': 35894, u'date': u'2017-09-10 18:52:10'}, {u'user_id': 3, u'title': u"So @amelia can't be at the festival except ", u'comment_id': 35959, u'content': u'So @amelia can\'t be at the festival except on Sunday - I think we will be missing an opportunity not being able to present the ethnography of opencare on the first day - but nothing much to do.
@woodbinehealth can you move the session for sunday morning? Thanks!
Seconded Are you up for it @nadia ?
I propose @Nadia for an engaged moderator. she knows about funding gone bad and crowdfunding done well i.e. openandchange
Aha, I checked the communication so far and you're right. I've been asking around for a science point of view, but have not found someone yet. Will do a final round of emails, otherwise 3 panel members is fine.
Then we do still need a moderator.
Thanks Frank @woodbinehealth for this, so much appreciated. I made some comments in light of last week\'s community call and added a sheet with the parked proposals. Let\'s indeed aim for mid September as a final date!
\n\nAlso note that http://festival.edgeryders.eu/ now has each session page linking to the conversation on our forum, so feel free to share those and invite people to join.
\n\nWinnie, for Edge of Funding we currently have Paola, Eric (not a moderator last time I checked.. maybe I missed smth), Chris. I dont know who else would be needed.
For the ethics panel we\'d have to ask @alberto or @markomanka, but from the current participants I would see either Olivier (echopen) or Fabio/ Bernard (Breathinggames).
Thanks for the good work on the program @woodbinehealth !
\n\nSome notes for myself and people who want to pitch in:
\n\nHave any potential candidates surfaced @noemi @gehan ?
', u'post_id': 35166, u'date': u'2017-09-01 20:24:35'}, {u'user_id': 4, u'title': u'Wow, @Abeba, super-interesting. I am only superficially familiar ', u'comment_id': 35862, u'content': u'Wow, @Abeba, super-interesting. I am only superficially familiar with embodiment theory etc. But, as a network scientist, I am comfortable with the idea that complicated phenomena like the self might emerge from a great many much simpler parts interacting. I guess other people out there close feedback loops, by locking each one of us in a web of relationship with others that is super-important to survival and reproduction: so, human introduce to each other an evolutionary advantage in being able to negotiate (rather than just fight-or-flight) and even collaborate with one another, for example exchanging information. Evolution might have come up with self-awareness as device to increase fitness along the way.
\n\nHowever, a biologist-cum-science fiction writer called Peter Watts has been popularising very interesting, fringe theoretical biology papers that posit that: (a) you can imagine intelligence without self-awareness (in fact we are even building it, in the form of AI); (b) self-awareness is costly to mantain (cortex and neocortex tissue sucking up glucose to maintain continuity of the homunculus behind our eyes); (c) because of (b), an intelligent but not self-aware lifeform, if it were to emerge, would eventually outcompete self-aware ones. That does not invalidate your argument, of course.
', u'post_id': 35378, u'date': u'2017-09-09 08:47:22'}, {u'user_id': 3948, u'title': u'Exactly! Understanding and accounting for relationships which are ', u'comment_id': 35610, u'content': u'Exactly! Understanding and accounting for relationships which are the fabrics of our being is at the heart of it all. And also acknowledging change, fluidity, uncertainty and openness changes the way we view self-hood or communities. But of course, uncertainty makes it difficult to pin things down and experiment whether you are doing academic work or implementing policies but I wholeheartedly believe we are better of with a relativity changing and uncertain science that is true to nature than the illusion of control and fixity.
', u'post_id': 35378, u'date': u'2017-09-06 11:13:57'}, {u'user_id': 3948, u'title': u'Indeed, Michael! Moving away from the notion of ', u'comment_id': 35608, u'content': u'Indeed, Michael! Moving away from the notion of the person as independent , fixed and autonomous (aka Cartesian) and towards the notion of cognition as contextual, in continual change and something essentially embedded in a web of relations is exactly the type of cognitive science I aspire to do. And this in a way is challenging as for most of Western intellectual history Cartesian thinking has been dominant and it has influenced and shaped almost all aspects of our thinking be it the way we think about ourselves or the way we conduct our experiments.
\n\nAnd yes, as far as I am concerned this new (ish) understanding of cognition is making progress in many fields - from robotics ( the principles of embodied cognition underlie Boston Dynamics\'s Big Dog) to psychology.
\n\nBest,
Abeba
Hi Noemi,
\n\nThank you. Yes, you are right - my work is theoretical and philosophical but my aim in the long term is to extend it to the experimental, or at least develop a clear methodological path as to how such theories and philosophical foundations could be cashed out in empirical work; hopefully dynamical modelling.
\n\nAs to your question about experience of care intervention feeding into theoretical thinking, no, I don't really have much first hand experience. However, I am familiar that theories of dialogical and embodied cognition are applied in clinical (therapy) and educational (the idea of Zone of Proximal Development (ZPD) for ex, which is all about relationships and disconnectedness) settings.
\n\nBest,
Abeba
Also, food has been a key discussion in the context of opencare. Check out this thread on how different food cultures facilitate care. @pavlos is looking at something related to how we see ourselves in relationship to the earth and soil in his work on transforming food systems in post-crisis Greece if I\'ve understood his work correctly?
', u'post_id': 35378, u'date': u'2017-09-06 08:23:31'}, {u'user_id': 8, u'title': u'This is at the heart of what we ', u'comment_id': 35588, u'content': u'This is at the heart of what we are exploring, isn\'t it?
\n\nOne of the cultural shocks I experienced when moving back to Europe was how people related to their homes. In Sweden the home is a closed off thing. One of its key attributes is serving as a fort and highly controlled environment entry to which has to be negotiated in advance and only for specific people, especially around meals. My parents home served as a social hangout place with people dropping by all the time at any time of the day, often without pre-warning, at most a call asking if we were in. Midnight, noon....didn\'t matter, when people showed up you would welcome them with tea and cookies or food if it was mealtime.
\n\nI believe that experimenting with cultural concepts of "home" as a place and set of interactions that take place in it is central towards understanding and reshaping that relationships between selves. One\'s own as well as the ones physically manifested in other bodies... very much looking forward to meeting Abeba
I saw this and it did make me happy. This strange idea of community having its first primordial moment when people are conscious together. story . language. metaphor. that great moment when people understand each other or the awkward moment when you don\'t. empathy and social anxiety changing peoples mind. perhaps cornerstones of the cognitive revolution.
\n\nwhat is more attested to is the key role of story. part of a way of changing the software of our minds. here is something i would like to know your thoughts on. i have been told about trauma something that disrupts the stories we tell ourselves about our lives. often replaying it like a broken record. man\'s search for meaning by victor frankl talks about the will to meaning being a key factor in the likelihood of people surviving or recover from the Holocaust. Could community stories be part of showing that collective resilience?
could new understandings of cognition and research into artificial intelligence make us more sympathetic as we get a better understanding of how difficult for everyone to be conscious at all?
I would surely hope Abeba joins us here and in Brussels for the event..
Reading your post reminds me how I lost my habit of reading academic writings - her style and method of inquiry looks like it\'s more theoretical and philosopical than empirical, am I wrong?
Has she, or perhaps you, seen care interventions feeding into this high level thinking and viceversa? I am wondering how people who are deep in the trenches might apply the thinking rather than inform it - thinking of @michael_dunn or @bernard here..
\n\nOtherwise, thanks for the post, you\'re definitely on a mission of diving deeper Gehan, just as you promised <3
', u'post_id': 35378, u'date': u'2017-09-05 15:43:28'}, {u'user_id': 2569, u'title': u'That would be fine for me. I expect ', u'comment_id': 35639, u'content': u"That would be fine for me. I expect it will depend on who is in attendance anyway.
I like the idea of being able to bounce between different sessions again this year so i'm happy to be a (helpful, busy) spectator. Do you need people to do Capture again this time around. Very happy to put myself forward.
I must admit with a few months away and the new format website (very pretty, by the way) i'm struggling to get back into the swing straight away.
Hi Alex, I\'m not sure how it fits the current program as it\'s been a while - @woodbinehealth and @gehan are adding final touches - see the curator\'s note and latest program version here.
\n\nWe do want to leave small room for ad hoc, less structured sessions - maybe we save this one for that?
', u'post_id': 6282, u'date': u'2017-08-26 11:59:45'}, {u'user_id': 2569, u'title': u"Hi Noemi,\n\nSorry to have gone so quiet. It's ", u'comment_id': 34639, u'content': u"Hi Noemi,
\n\nSorry to have gone so quiet. It's been the crazy few months i was expecting it to be, and i've been wrapped up in all thing theatre.
I've kept a eye on the developments that have occurred and i'll still very much be joining in. Seems unlikely that i would be able to run a session, but depending on the other people in attendance i'd certainly be happy to organise something informal (even if it's just for everyone to say hello in person and share how things have moved forward for them since we shared our original stories)
If there is still an open slot and you already know that others from the refugee care strand are looking to attend i'd be happy to convene a 'Where are we now? What next?' session in the slot. Something on that scale could fit into my current schedule.
Not sure if this is happening anymore, but wanted to give @alex_levene a heads up that we\'re releasing a first version of the festival program - pretty full by now - next week.
\n\nIt would be a pity if after all the conversations and exhibitions last year around the issue of refugee care and new economic models we dont have anything in the Festival program..
', u'post_id': 6282, u'date': u'2017-07-28 14:43:06'}, {u'user_id': 3613, u'title': u'Commonality', u'comment_id': 28263, u'content': u'Still navigating the complexity of the Edgeryders site, so just coming across your inspiring post @Alex_Levene ,\xa0immense work, with an impressive span. I\'d not come across Good Chance Theatre - inspirational!
\n\nI\'m interested in the trajectory from reactionary group to largest grassroots charity - seems to be a common thread around groups forming in response to urgent needs. I wonder how it might be better understood so that it can be more deliberately resourced across a range of issues? I\'m also curious about your statement "Ethos is heavily on grassroots, non-NGO, Non-Political, but partisan actors" and what observations, experiences are behind it. I\'m guessing it might relate to the theme I\'m curating for the OpenVillage event. Your original post is a much bigger scope but there are\xa0commonalities and I wonder if you\'re further forward in the \'focussed brief\' you mention?\xa0A number of the\xa0discussions you\'ve listed\xa0would help in illuminating\xa0the enabling factors that create and maintain grassroots care responses.\xa0
\n\nI think "practices for developing cohesion and integration" are key and would love to create some space to explore these in a session. It\'s fundamental to your later discussion point:\xa0Tech and refugees. How do we stop building apps and start building communities? Its obvious that there will be many\xa0insights from the grassroots work you\'ve outlined that will be very relevant\xa0to wider discussions on citizen led health and social care.
\n\nGood to hear where you\'re at. Gehan
', u'post_id': 6282, u'date': u'2017-06-30 09:49:00'}, {u'user_id': 2569, u'title': u"Thanks @Noemi.\n\nI'll have a look at the session ", u'comment_id': 27226, u'content': u'Thanks @Noemi.
\n\nI\'ll have a look at the session notes from LOTE5 and start to write a focussed brief for a session at OpenVillage
', u'post_id': 6282, u'date': u'2017-05-22 11:56:27'}, {u'user_id': 3, u'title': u'Upskilling - More resources..', u'comment_id': 26671, u'content': u'@Alex_Levene after our chat last week I\xa0just realized the session at LOTE5 in Brussels last year on refugee-residents collaboration could be of help. Here\xa0is\xa0something that might go with your focus, because there seems to be another aspect\xa0to getting people into roles fit for their aspirations, and not menial work in a shrinking and polarized "job market":\xa0building coops or services with\xa0those needing them, so taking the lead to create their/our own "jobs":
\n\nsome people in the group assert that the venture has to generate an income for the refugees, and not just training- training for what? Founder\'s answer: Making people happy! (the whole conversation documented here)
', u'post_id': 6282, u'date': u'2017-05-22 11:41:00'}, {u'user_id': 2569, u'title': u"I'm aware of The Bike Project, they're doing ", u'comment_id': 23956, u'content': u'I\'m aware of The Bike Project, they\'re doing some amazing work with refugees and asylum seekers in London.
\n\nAlso, a big fan of the work done by Refugees at Home.
\n\nI would love to see examples of effective work popping up around the festival. I\'d love to see the modular furniture systems of @Tomma \'s team exhibited,\xa0or a display by ROC21 on their plans for building collaborative refugee accommodations.
\n\nI wonder to what extent we would need to find some innovative solutions from people/orgs on the gorund in Brussels. Would it be possible for a group like The Bike Project to set up quickly on the ground for 3 days? I guess we\'d have to ask them.
\n\nI would foresee that a chunk of money would go towards covering the transport costs to bring groups that could deliver services on the ground. This would need to be delivered in conjunction with organisations already working with refugees and/or homelessness in the city. If we\'re bringing these groups great innovations together then they should be delivered into the hands of people who will most benefit from them, allowing for a 2-way discussion between service users (urgh!) and service providers.
', u'post_id': 6282, u'date': u'2017-05-11 13:30:45'}, {u'user_id': 3, u'title': u'"Practices for developing cohesion and integration"', u'comment_id': 20445, u'content': u'Still thinking about how the theme around refugees and people on the move can work at the OpenVillage Festival this October. Heads up: it\'s what participatory program building often ends up being - proposals, moving pieces around, and generating more ideas to make sure the event is both\xa0relevant and generates more knowledge.
\n\nTo zoom in on one of your points above and my earlier observation\xa0@Alex_Levene : one focus\xa0could be on showcasing actual\xa0upskilling with/by people on the move,\xa0creating new market demands, so about 2 or 3 of your questions\xa0in 1,\xa0because they are interrelated.\xa0
\n\nAdding to your list of orgs and\xa0people doing really effective work already alongside refugees: could be\xa0The Bike project\xa0(just learned about it via via @CarolineM ! thanks for sharing about AMAPHIKO platform), or one of the projects @MANU_BABELE is coaching in Lesbos for business modeling? \xa0\xa0
\n\nA call dedicated to just this area of work could be useful..\xa0
', u'post_id': 6282, u'date': u'2017-05-11 09:12:08'}, {u'user_id': 4, u'title': u'Looks promising', u'comment_id': 15811, u'content': u'I used to have a contact in the Commission... If we decide to go ahead with this, I can try to bring her online, keep me posted.
\n\nAs for "with" service recipients (horrible word! In an ideal OpenCare scenario we are all\xa0designers and deliverers as well as being recipients, by definition!): the mind runs to @Alkasem and @Yara_Al_Adib , who are both in Belgium. Alkasem is here in BXL, Yara in Antwerp.\xa0
', u'post_id': 6282, u'date': u'2017-05-02 16:13:54'}, {u'user_id': 2569, u'title': u'Absolutely to both @Noemi and\xa0@Alberto.\n\nRefugees welcome! ', u'comment_id': 11619, u'content': u'Absolutely to both @Noemi and\xa0@Alberto.
\n\nRefugees welcome!
', u'post_id': 6282, u'date': u'2017-05-02 21:42:36'}, {u'user_id': 3, u'title': u'How do we stop building apps and start building communities?', u'comment_id': 8952, u'content': u'I deeply reasonate with this and it\'s interesting how late the issue is being exposed.\xa0
\n\nIn a conversation the other day with @Yannick last week he had a great idea: why don\'t we host something with service recipients, with the very people for whom a project is intended to cater? In the case of apps/tech, it will be users, but in the case of more social services, it will be people who show up and enjoy being cut some slack. Of course, the session would welcome diverse people alongside them..
\n\ncc-ing @ninabreznik in case she has a take on this, given the hotspot that Berlin is.
', u'post_id': 6282, u'date': u'2017-05-01 20:54:25'}, {u'user_id': 3686, u'title': u'policy ultimately in declaring what your responsible for, ', u'comment_id': 35505, u'content': u'policy ultimately in declaring what your responsible for, planning and prevention. welfare state models of civil defense.
\n\neffective welfare states can prevent disasters entirely 90%
', u'post_id': 6470, u'date': u'2017-09-05 13:12:38'}, {u'user_id': 4, u'title': u'Emergency response is something that, in the right ', u'comment_id': 35236, u'content': u'Emergency response is something that, in the right situation, communities might do very well.
\n\nAlready in the 1980s, I recall that an Italian sociologist called Francesco Lanzara observed how, within hours of a major earthquake in southern Italy, one guy had gone out to the main square, in ruins, of a small town that had been flattened by the quake. He carried a large camping stove, a large tank of water, a large bag of coffee and five or six coffee machines. He started offering hot coffee to people digging in the rubble.
\n\nOver the following two days, "Quake Caf\xe9" became a meeting point for people to get organised, plan their effort for the day, hustle for wanted materials, offer help, exchange information (this is 1980, no Twitter). By offering a natural "hub", Quake Caf\xe9 had enabled a myriad small initiative to happen faster and more efficiently, with a minimal effort. Positive feedback kicked in: the barista himself got more organised, he now had small snacks and a helper. All the while, the state was struggling to get together a response. On the third day, the army moved in, but they had more guns than shovels. They could not much to help, at least initially, but they did order the barista to pack up and go home.
\n\nLanzara was stunned. How was it that local people could stitch together the embryo of a system in a few hours, with no resources, no command power and no coordination tools? And how was it that the mighty machine of the state, who did have resources, command power and organisation, sputtered first and then actually did damage, preventing what was working from continuing operations?
\n\nThis small episode, and a few others in the same earthquake, spurred a wave of sociological literature that continues to this day. I have only read Lanzara\'s 1993 book (in Italian), but not his earlier article in English on the Journal of Management Studies, and not the book by Rebecca Solnit which probably you, @michael_dunn, have in mind.
\n\nI am not too optimistic about the possibility to do policy based on these intuition. They are by definition anti-policy. But I may be wrong, and for sure would be interested in hearing your reflections from the work done with the mobile clinic.
', u'post_id': 6470, u'date': u'2017-09-01 21:30:53'}, {u'user_id': 3, u'title': u'Coordination around emergency responses', u'comment_id': 17141, u'content': u'I think that is a common thread so far: we\'ve heard from\xa0welcoming refugees in Greece - a lot of which was ad hoc\xa0engineered so to speak, to p2p on-call\xa0systems which are more structured (and tech based - see BUOY\'s / "Call a friend, not the cops").\xa0\xa0I don\'t think @Aravella_Salonikidou will join us in Brussels, but maybe\xa0someone in her network is interested in connecting with Michael and his\xa0footcare mobile clinic? \xa0
\n\nthe migrant crisis as a training ground for the crisis of the future -\xa0this reads\xa0so compelling, thank you Michael\xa0for coining it!\xa0
\n\nI definitely see a session built as an experience/lesson sharing conversation between Michael and others who are doing great work on\xa0the ground, and at least someone with a high level overview that understands how the supoort system fails at the coordination and resource allocation level. @Alex_Levene also has been off the grid but hopefully resurfacing soon - Alex do you think someone in Help Refugees would want to join a conversation \xa0framed like this?\xa0
', u'post_id': 6470, u'date': u'2017-07-07 15:00:18'}, {u'user_id': 3613, u'title': u'two interesting posts... & some meaty questions ', u'comment_id': 14386, u'content': u'Thanks @Michael_Dunn for this and your other post\xa0on the work of the Golden Trailer - mobile clinic & cinema.
\n\nClearly you\'ll have amassed vital\xa0practical experience on your travels and it would be good to link up the learning with others in Edgeryders. I really like the notion of \'Emergency Mutual Aid\' and a very concrete practice of solidarity. I can see how it\'s useful to see "the migrant crisis as a training ground for the crisis of the future".\xa0
\n\nThe questions you raise in both posts seem to fall in to a number of headings: training/upskilling, logistics/coordination, personal resilience. These issues are core\xa0to the central enquiry of\xa0OpenCare if we are to gather insights to shape a "DIY welfare" network\xa0and they resonate with other questions raised in other posts shared on the Edgeryders platform. I could see a useful session - drawing on what you\'ve learned and co-enquiry around the questions you\'ve outlined\xa0- making a meaningful contribution\xa0to the Open Village event in October. I can also see that it could sit well in either the Architectures of Love theme or the Working and Living Well Together curated by @Woodbinehealth.\xa0It\'s natural that there\'ll be overlap across all the themes of the festival. @Noemi - what are your thoughts on this?
\n\nUnder the Architectures theme it would be useful to explore - personal resilience, effective\xa0ways to pass on skills (this is also something other theme conversations have picked up on - see here). Logistics/coordination may come in to the considerations about the role of citizen compared to role of the state and appropriate instruments such as policy. I\'m not yet clear on this. Perhaps others have some useful perspectives?\xa0Your questions would also bring in the dimension of emergency -\xa0what does urgency bring\xa0to the lines of enquiry the Architectures theme have considered so far?
', u'post_id': 6470, u'date': u'2017-07-07 10:14:00'}, {u'user_id': 3686, u'title': u'relating it to policy ideas', u'comment_id': 6685, u'content': u'working with at talking to poeple about barriers. not being able to get the time off of work. not being allowed to take 4 weeks at once is very common. Even when they would be developing useful transferable skills.
\n\nchronic embitterment within organisations that seem incohernent.
\n\nthis has been a big issue in the NHS. there is a large intrest in opencare from medical professionals. addressing its internal issues or just giving greater flexibility to the staff would give staff the head space for other projects of intrest.
', u'post_id': 6470, u'date': u'2017-07-05 11:04:28'}, {u'user_id': 3, u'title': u'Sounds good! Lucia coming does in no way ', u'comment_id': 35410, u'content': u'Sounds good! Lucia coming does in no way exclude what we discussed and your contributions @matteo! It would be good to hear you all, or all the Milano crews coming whose voice you consider relevant in the conversation - you mentioned @costantino during our call.
', u'post_id': 6415, u'date': u'2017-09-05 08:47:12'}, {u'user_id': 3520, u'title': u'\n\nnoemi:\nLearning to do open policy\n\nHi Noemi, about "Learning ', u'comment_id': 35360, u'content': u'\n\nHi Noemi, about "Learning to do open policy" @luciascopelliti would give her contribution as she confirmed she\'ll attend Open village. Though @rossana_torri and myself will shortly catch up with @gehan on the building up of the session.
', u'post_id': 6415, u'date': u'2017-09-04 12:34:43'}, {u'user_id': 3, u'title': u'Meet the Policy Maker debate.. ? (curated)', u'comment_id': 7471, u'content': u'Hello all,
\n\nI propose we work towards\xa0a session to make the most out of experiences in creating conditions and infrastructure for open care: open and collaborative policy making being one aspect of it, and I\'m sure there\'s more. Hopefully we have the journey of Milano to start with, but\xa0I can see it playing out as a live debate with other progressive civil servants\xa0and community members whom\xa0we could invite based on a preliminary outline.\xa0
\n\nI invited Lucia Scopelliti and Gehan for a first stab at the concept, but I could use some input from @Alberto and @Tino_Sanandaji too. - does anyone come to mind that we could invite who understands policy and political opportunities and constraints from city side or community side?
', u'post_id': 6415, u'date': u'2017-06-20 09:36:00'}, {u'user_id': 3804, u'title': u'\n\nnoemi:\n"agree that we have to study the idea ', u'comment_id': 35390, u'content': u'\n\nYes, if we can\'t figure out how to build within existing frameworks and instead insist on forcing a clean break, it would be unprecedented and for good reason. Pretty sure all change, even revolutionary change, has to respect current climate and parameters. Instead of shunning the financial system, understand how it sucks money out of us and how compound interest works, instead of rejecting all western medicine, pretty sure there\'s lots of gems in there as well, etc etc.
\n\nPractical steps to get to where we need to be is less romantic than the insurrection everything narrative, but I\'ll be damned if it\'s this struggle isn\'t protracted as hell.
', u'post_id': 6376, u'date': u'2017-09-04 20:41:42'}, {u'user_id': 3367, u'title': u'A revolutionary life', u'comment_id': 20144, u'content': u'Hey all,
\n\nThanks for the comments. \xa0Always impressed with the level of analysis within the group. \xa0I think our group tries to reflect the larger feeling within the world at the time: that we must act as bridges to something else. \xa0Many of us come from the anarchist model of thinking, and in the US, that comes with a heavy focus on destruction. \xa0Mainly in contrast to the NGO/professionalization model of "bandaids" and objectification. \xa0But how we see the parallels now is that we must no longer allow ourselves to be motivated by a destruction entity. \xa0Rather we must begin building the worlds that we would die for. \xa0A world worth dying for. \xa0Similar to the examples you all used, there is a strong movement to not reject a destructive attitude (revolutions being inherently destructive) but recognizing that our strength now is our potential to offer the world a new vision of life, the "good life/buen vivir" of the Zapatistas. \xa0As such, I work in a public hospital and acknolwedge the needs for institutions at this time. \xa0But always with an eye towards utilizing towards our ends, not becoming dependent on the institutions/NGOs for a way of life. \xa0
\n\nI look forward to continuing the conversation! \xa0As for practical things, I think a larger question we have is the role of networks in creating autonomy, how to build structures that increase autonomy not just something that replicates Silicon Valley mindsets. \xa0Also for skills, maybe something aroudn the very act of giving skills. \xa0How we plan out our skill shares and what are the main purposes (i.e beyond just passing on knowledge). \xa0
', u'post_id': 6376, u'date': u'2017-06-06 23:06:56'}, {u'user_id': 3, u'title': u'Agency: working with, against the system, or..?', u'comment_id': 17074, u'content': u'Yes, I resonated with the association of words as well. However, the Centre for Political Beauty works completely against the system, or parrallel to it at best.
\n\nWoodbine as well, from past conversations, seem to be\xa0on the revolutionary side - although someone in the collective mentioned working in public hospitals and guiding people through the system, fully aware that at the end of the day the system is failing us all.\xa0This past discussion on the Woodbine sustainability and interaction with the system is truly\xa0enlightening: "agree that we have to study the idea of both being within the system and out". What came out was the question of whether teaching prevention, taking on a single point of system failure could be lower hanging fruit for groups like yours who make a real contribution but also risk overburdening or taking on too big a task. Meeting basic survival needs like housing or food, which are traditionally system tasks is more difficult and involve a certain work\xa0with the system in order to build that\xa0major capacity - i.e. charities or grant funded organisations.\xa0 @maymay can confirm if this is a good summary.
\n\nOver these 20 years GalGael is surely becoming a repository\xa0of learnings and things which work, or dont. How did you work over these years in relation with existing institutions?
\n\nThis is just one of the many points of congruence we found in opencare community. It all goes back to\xa0how we build the infrastructure needed, a point nicely made by @Woodbine .
', u'post_id': 6376, u'date': u'2017-06-05 20:44:08'}, {u'user_id': 3613, u'title': u'Urgency and Agency', u'comment_id': 13972, u'content': u'Hello all @Woodbinehealth,\xa0
\n\nI really connect with all you\'ve said here and in particular you\'re sense of urgency and the imperative of radically different approaches to health and its broader determinants. I have often found myself at well intentioned workshops with rooms full of professionals working hard at designing perfect interventions that will deliver the miraculous \u2018product\' of health to our communities. I\u2019m intensely frustrated by the waste of human resources and energy when surely it must be obvious that health is not simply the output of professional \u2018interventions\u2019 (even the clinical language makes me recoil). Surely it\u2019s obvious that health is also fundamentally the natural outcome of healthy communities, relationships and systems - including our political and economic systems.\xa0
\n\nThe work I\'m involved in\xa0at GalGael came out of fires protesting motorways bringing asthma and nature deprivation to communities in Glasgow already hard pressed. We created relative safety admist a housing scheme where there was little.\xa0We learnt along the way - by accident - the sense of agency that comes from \u2018the act of sharing responsibilities\u2019 within the context of the encampment. We chose to continue to work with that sense of agency and still do so 20 years after the motorway was built. We\u2019ve continued learning and particularly the extent to which that sense of agency is profoundly connected to our health. We\u2019re lucky in Scotland to have had a recent Government Chief Medical Officer who underlined the importance of work on salutogenesis - the importance of studying what makes us healthy rather than disease itself - and the role that our sense of control over our own lives plays in our health; both physical and mental. (Harry Burns - I believe he is regularly in NY)
\n\nFor a while we were disheartened to see people we\u2019d worked with on issues of addiction appear back at our doors. What were we doing wrong? We were adamant that we did not want to be another revolving door for people stuck in the cogs of a poverty industry or disease factory. Slowly we realised - by classical \'analysing our own reality\' - that the systems and relationships beyond our doors and beyond our direct influence were considerably more effective at creating disease and dysfunction than we could ever be at resolving it - especially on grant funded (frequently cut) project work, creating environments where people could find greater health and humanity. And now we know the imperative of both - to be there when people need us on the renewed understanding that many diseases and social ills are adaptations to the dysfunction in our wider systems. On its own, this would amount to little more than sticking a finger in a crack in the harbour wall in the face of a tsunami. So now we understand that working to influence system change is also essential to not only the health in individuals but increasingly the survival of our communities. I find what Deborah Frieze refers to as\xa0\'hospicing the\xa0dying\' in relation to systems\xa0helpful - an important aspect of care work in our times. What is called for as old systems collapse? How do we work to illuminate and support the emergence of the new?\xa0
\n\nThese thoughts\xa0led to me proposing a track for the Open Village - see more here. If you are delivering a session - I would love to hear more and stay in touch as the programme shapes up.
\n\n@Noemi - happy to come across your link. I love the notion of a Centre for Political Beauty. There seems to be something genuinely powerful and thought provoking when we put two words together that we wouldn\'t normally associate at all.
\n\nThere is much that is quite overwhelming\xa0in the\xa0world - loss, grief, fear, uncertainty, greed.\xa0In standing firm in the face of this, the words of Dr. Cornel West regularly come to mind;\xa0\'I cannot be an optimist - but I am a prisoner of hope\'. They\xa0seem to hold the tension between current realities and possible futures beautifully.
', u'post_id': 6376, u'date': u'2017-06-03 10:15:06'}, {u'user_id': 3, u'title': u'We missed you over here.', u'comment_id': 6557, u'content': u'We missed you @Woodbinehealth , welcome back. I\'m very sorry for your\xa0loss, can\'t even begin to imagine.
\n\nJust this morning I was reading this @politicalbeauty/aggressive-humanism-bbff64cf4296">"manifesto" on aggressive humanism by the artistic-militant group in Berlin called Center for Political Beauty. Even their name, aside from tactics,\xa0is just so inspiring.\xa0It reminded me of you guys somehow, the grit..\xa0
\n\nAutonomous mental health infrastructure:\xa0that is what I would prioritize as well for your participation at OpenVillage Festival. How would you see an interaction with the opencare community happening in brussels? in an effective way that supports your own mission. From\xa0the top of my head, priming the\xa0conversation with key\xa0questions around which we could gather initial experiences ahead of the event?\xa0or..?
\n\nFor skill sharing and practical activities, @steelweaver was proposing to demonstrate an acupuncture micro clinic at the event - could we add to that something you guys want to share i.e. teaching others, body fitness classes etc?
', u'post_id': 6376, u'date': u'2017-06-03 08:14:26'}, {u'user_id': 2915, u'title': u'Yes I do. Email me some details about ', u'comment_id': 35363, u'content': u'Yes I do. Email me some details about your stay and I can definitely meet up with you. tex@well.com
', u'post_id': 34920, u'date': u'2017-09-04 13:41:49'}, {u'user_id': 3362, u'title': u'Some notes from an email conversation about fellowship ', u'comment_id': 35354, u'content': u'Some notes from an email conversation about fellowship and project progress.
\n\n\n', u'post_id': 34920, u'date': u'2017-09-04 09:04:46'}, {u'user_id': 3362, u'title': u"That's the one @johncoate . \n\nGreat, I didn't ", u'comment_id': 35341, u'content': u'I won\'t pretend I understand the learning process. It is generally chaotic and serendipitous, in my case. However our (note: with @markomanka) conversations were enlightening and thought-provoking for sure, and some ideas will stick for a long time. They have influenced our self-reflection and helped sharpen some of our ideas that had been ripening for long.
\nEven though I am hungry to learn more, from you and others, the phase we are now in demands execution. Sadly, because I know there\'s so much more to learn. Yet zooming out again now would feel like overthinking. Our direction is clear; it will take time, people and resources to move forward.
\nThe execution will lead to new and unique insights in due time, for the next learning cycle. I\'m extremely satisfied so far and excited by the outlook!
\n
That\'s the one @johncoate .
\n\nGreat, I didn\'t know. I\'m there from 10 to 18 September. Do you have time to meet?
', u'post_id': 34920, u'date': u'2017-09-04 07:32:16'}, {u'user_id': 2915, u'title': u'When are you coming out to Oakland? ', u'comment_id': 35257, u'content': u'When are you coming out to Oakland? I am quite nearby..unless you mean someplace other than Oakland, California.
', u'post_id': 34920, u'date': u'2017-09-02 02:48:51'}, {u'user_id': 3, u'title': u'I second that. Everywhere we go, the same. ', u'comment_id': 35217, u'content': u'I second that. Everywhere we go, the same. Just now I am having a conversation about the value of pausing to evaluate. Everyone seems to be weary of evaluation processes (internal and external, generally or for projects) because it sounds like a box you need to tick in overly bureaucratic projects. But I find the need to do that greater and greater.. Not sure about the rest of you?
', u'post_id': 34920, u'date': u'2017-09-01 17:09:58'}, {u'user_id': 3367, u'title': u'So interesting that even though our general projects ', u'comment_id': 35125, u'content': u'So interesting that even though our general projects differ in scope, we all face the challenge of rising rents, the struggle of structure, and time. Progress sounds amazing and looking forward to you meeting the folks in NYC!
', u'post_id': 34920, u'date': u'2017-08-31 03:01:46'}, {u'user_id': 3757, u'title': u'haha ok thanks precious info ', u'comment_id': 35099, u'content': u'haha ok thanks precious info
', u'post_id': 34920, u'date': u'2017-08-30 19:20:37'}, {u'user_id': 3362, u'title': u'Alberto was at our kick-off event in Ghent, ', u'comment_id': 35098, u'content': u"Alberto was at our kick-off event in Ghent, we discussed it there (Sydney started around the same time we did). He may know it from there, but I think I wrote about it online before as well.
\n\nIt's Alex Kelly from BioFoundry leading their efforts.
", u'post_id': 34920, u'date': u'2017-08-30 19:20:06'}, {u'user_id': 3757, u'title': u"Alberto mentioning ''Sydney'' but you are not mentioning ", u'comment_id': 35096, u'content': u"Alberto mentioning ''Sydney'' but you are not mentioning it in your own explaination haha so i m wondering why sydney? and if Sydney who?
", u'post_id': 34920, u'date': u'2017-08-30 19:10:29'}, {u'user_id': 3362, u'title': u'How do you mean? ', u'comment_id': 35090, u'content': u'How do you mean?
', u'post_id': 34920, u'date': u'2017-08-30 17:59:02'}, {u'user_id': 3362, u'title': u"We didn't go into simulations during the sessions, ", u'comment_id': 35089, u'content': u"We didn't go into simulations during the sessions, they had to stay light and high level. The simulations were mainly financial in nature and a dedicated team worked with those. The output was shared with everyone, though only a few people were really interested in the fine details of it.
\n\nWe didn't go as a deep as cash flow, just simple in and out analysis, because we do still have some flexibility in that regard within the coming (critical) period. A lot of thought had gone into it before as well: where to offer what product, who invests in which infrastructure, who covers what, who manages what, ... And then another part is just ad hoc and in the moment.
\n\nThe core feedback from Filip was positive: we enjoy what we do and we are very aligned. But the main value was not in that, we kind of knew that and weren't so worried. He helped make sense of things here and there, by asking and synthesizing, before, during and after. I did meet him a few times one-on-one as well, which helped me as a facilitator for the sessions. That was valuable.
", u'post_id': 34920, u'date': u'2017-08-30 17:58:54'}, {u'user_id': 3757, u'title': u'Sydney? I believe not ', u'comment_id': 35084, u'content': u'Sydney? I believe not
', u'post_id': 34920, u'date': u'2017-08-30 17:20:43'}, {u'user_id': 3, u'title': u"I'm also enjoying the posts - it's interesting ", u'comment_id': 35083, u'content': u"I'm also enjoying the posts - it's interesting to see how you're using the fellowship context for deep learning and thinking.
\n\nHow exactly did you do simulations in the sessions? Does it involve numbers and cash flow predictions based on current products and services, or something else?
\n\nWhat is the core piece of feedback you've received from Filip? It seems from what you write it's good to have an external pair of specialist eyes, but can't put my finger on it still...
", u'post_id': 34920, u'date': u'2017-08-30 17:13:37'}, {u'user_id': 4, u'title': u'This is some seriously good work, @winnieponcelet. And ', u'comment_id': 34947, u'content': u'This is some seriously good work, @winnieponcelet. And two really important pieces of news:
\n\nI am enjoying these posts, keep \'em coming. I am sure @owen enjoys them too, especially this one!
Holler !! coucou @lucy
\n\nThis is Amazing I have met Lucy in Berlin few times and she always wanted to build something around DIYBIO I think she wanted to build a community but didnt find a place yet...(last time I checked) I have loads of problem critizing her work and the project she is trying to put up and that\'s a good sign
Mentioning public lab is part of being a good sign in terms of citizen science and online organisation (I would go check more with Jeff Warren (the real underground hacker behind public lab EX MIT\'s Center for Civic Media and is a real influence on me around open source hardware and open digital tools...he builded the public lab online platform and also made most of the first prototypes around spectrometers...without him no Public lab...we love his ways of beeing hyperactive brain, all the time.... also Liz Barry seems to be super legit at doing DIY stuff and community organising (academic)...
\n\nLucy also understands Hackteria philosophy I think and can differentiate a fake story telling from real lab work...especially under the eye of Marc Dusseillier, legendary critic of the all DIYBIO movement...one other main influence of mine in my path to understand the world of biohackers, always been suporting us at Biohacking safari and he have been to all biohackerspaces in the world...also HUGE workshopologist... Full Alchemist slightly mystic, we love him
\n\nthats for the @winnieponcelet to take notes
and here a photo from my private collection (not the best i admit)
Marc on the left / Jeff in the middle (gold dropping)
', u'post_id': 6427, u'date': u'2017-09-02 01:43:03'}, {u'user_id': 3708, u'title': u'funding panel', u'comment_id': 26689, u'content': u"Hi Winnie,
\n\nThanks for following up on this. Sounds like a good plan.
\n\nFor sure all kinds of civil society projects must deal with similar issues around funding. We might have recourse to different funding sources and the culture probably varies, but the same risk issues must always apply if you're trying to get funding for non-institutional projects. It would be interesting to learn how sectors that are more accustomed to funding non-institutional projects have learned to mitigate risk over the years. I'm sure a panel that collects these experiences would be really valuable to everyone. It would be cool if the DIY Science Network could be part of that.
\n\nIf it's possible to also leave some flexibility in the schedule for a more practical session that would be really good. It's been tough to find the time to push forward with the project over the last weeks, so I unfortunately don't have a clearer idea of where we'll be in October at this point.
", u'post_id': 6427, u'date': u'2017-06-30 21:33:10'}, {u'user_id': 3362, u'title': u'Panel on funding', u'comment_id': 24558, u'content': u"Over the last week we've tried to identify common thread across the different Opencare themes. Funding and funding policy was one of them.
\n\nWe'd like to do a panel on funding\xa0with a diverse set of participants. This way we use the diversity present at the festival and have multiple perspectives that can lead to new insights. I think it is interesting both ways if\xa0DIY Science Network is\xa0part of the panel.
\n\nAs for a practical session around funding, we will either plan it at a later point or\xa0leave space in the program for things to be organised on the spot\xa0if there's interest. We can plan that according to the outcome of the co-design sprint this summer.
\n\nDoes that sound good for you?
", u'post_id': 6427, u'date': u'2017-06-30 16:20:00'}, {u'user_id': 3362, u'title': u'Diverse insights', u'comment_id': 20342, u'content': u'Hi @Lucy , welcome on the platform!
\n\nFor this topic I think diversity is especially interesting. Insights from projects outside of DIY science would be interesting to hear. These projects have the same questions, so it would make sense to find better answers together.
\n\nWe should figure out a way to make use of the diversity, while keeping a focus so that it is useful for a more niche field. We talked about it during the community call earlier today and we\'ll think that through in the coming days. The first idea was to group sessions around broader central questions (eg. policy or funding) rather than themes (eg. the science theme). What do you think would be useful for you?
', u'post_id': 6427, u'date': u'2017-06-21 21:18:56'}, {u'user_id': 3708, u'title': u'intermediaries', u'comment_id': 14809, u'content': u'Wow - congratulations on the World Bank bid. That\'s huge.. It would be great to dig deeper into these kind of strategies. It would be great to see your past funding applications.
\n\nI had a conversation with Shannon Doesmagen (PublicLab executive director) recently - they frequently act as fiscal sponsor for other projects, fielding a lot of funding from private foundations and donors, very occasionally public funding (they\'re based in the US). Most recently they\'ve been managing a lot of funding that has come in for the Environmental Data Governance Initiative (EDGI). It\'s a little different, but the same trust issues apply. I think they would also be happy to share the details of their practices.
\n\nIn Germany, Open Knowledge Foundation fairly recently launched their Prototype Fund, which distributes funding from the German Education and Research ministry to smaller civic tech projects. Again, similar but different. I could see what I can find out about that as well.
\n\nNeither of those are so clearly about ecosystems or focussed collective action between smaller initiatives, as edgeryders is. But interesting nonetheless. I think this could be a really interesting and practical discussion.
', u'post_id': 6427, u'date': u'2017-06-20 22:17:45'}, {u'user_id': 8, u'title': u'Ecosystems vs. individual projects.', u'comment_id': 7509, u'content': u"Hi Lucy,
\n\nA little context: Last year we ran a small experiment to build a collective bid for the MacArthur Foundation's 100 Million USD grant. Edgeryders wrote the meta application, and then set up a simple process through which projects could attach themselves to the bid (approx requirement of work for each participating project=\xa02.5hr). The Edgeryders organisation was the organisation which would then take responsibility for managing the funds.\xa0We did manage to get past the first round (administrative due diligence). It was a good way to go about it in that it also helped us better understand what people in the OpenCare/broader Edgeryders community need. The design of the OpenVillage festival is based on what we learned.
\n\nI don't know if you saw that we just won a World Bank bid. The work we will be doing will build on this idea of nurturing initiatives as part of a collective effort towards something. We're still learning how to do this, but the results so far are promising. So maybe it could make sense to dedicate a session to sharing strategies, even past funding applications that worked for remixing etc...
", u'post_id': 6427, u'date': u'2017-06-20 10:35:03'}, {u'user_id': 3, u'title': u"Hi @GiladGome, I'm Noemi and contributing to good ", u'comment_id': 34923, u'content': u'Hi @GiladGome, I\'m Noemi and contributing to good information flows around here Community manager since six years now. To keep up to date with the workshop developments - now finding spaces and people - please see these questions and answer them in a comment? That contributes to good outcomes and ensures you will be kept up to speed.. as a lot of the preparatory work will happen in the digital. Massive thanks and also to @dailylaurel for making the connection!
yes, Check out our project on experiment.com\\zikalika it is now continuing RnD in the CRI in Paris. TLDR - if you now what you are looking for a PCR reaction can give you a yes\\no answer. for example - do I have Zika? is this water safe? does this mosquito carry dengue?
Anything about the meetup in Amman?
hope this answers
\n\nG.
', u'post_id': 34621, u'date': u'2017-08-28 09:09:40'}, {u'user_id': 3757, u'title': u'Glad you joined @GiladGome ', u'comment_id': 34859, u'content': u'Glad you joined @GiladGome
', u'post_id': 34621, u'date': u'2017-08-27 21:44:11'}, {u'user_id': 3782, u'title': u'\n\nGiladGome:\nI am especially interested in creating tools that ', u'comment_id': 34813, u'content': u'\n\ninteresting, could you please elaborate more on this.
', u'post_id': 34621, u'date': u'2017-08-26 15:48:50'}, {u'user_id': 3831, u'title': u'Thanks! I know cell free and signed up ', u'comment_id': 34737, u'content': u'Thanks! I know cell free and signed up for digi.bio beta just now thanks to your recommendation!
\n\nG.
', u'post_id': 34621, u'date': u'2017-08-25 17:33:56'}, {u'user_id': 3831, u'title': u'Thanks Nadia! very interested in meeting you all ', u'comment_id': 34736, u'content': u'Thanks Nadia!
very interested in meeting you all here and offline.
Will try to apply for Brussels for sure!
Also i Am interested in the event in Amman and would like to know the organizers...
G.
', u'post_id': 34621, u'date': u'2017-08-25 17:32:45'}, {u'user_id': 3362, u'title': u'Hi @GiladGome ,nice to read you. As Nadia ', u'comment_id': 34720, u'content': u'Hi @GiladGome ,
nice to read you. As Nadia said it would be great if you considered coming to the Open Village in October. There will be quite some scientist activists, as you call them, present to share their work and learn from each other.
For tools that allow people to read DNA/RNA, two projects come to mind: DigiBio, open source microfluidics devices (https://digi.bio/) and Cell-Free Tech (http://cell-free.tech/), who produce cell-free extract. They\'re both young companies, have prototypes and are very open to cool projects for their beta program.
', u'post_id': 34621, u'date': u'2017-08-25 13:27:20'}, {u'user_id': 8, u'title': u"Hi Gilad, \n\nwelcome to edgeryders. Don't know if ", u'comment_id': 34658, u'content': u'Hi Gilad,
\n\nwelcome to edgeryders. Don\'t know if you\'ve seen but we\'re running a festival in Brussels on oct 19-21, might be a nice opportunity to meet in meatspace. festival.edgeryders.eu
\n\nIn here are several people in the community who are looking towards/engaged at the intersections of open science & tech, health/social care and communities. You\'ll find a lot of them in the OpenCare groups here: https://edgeryders.eu/c/opencare
\n\nSome like @markomanka work within institutions, others are running independent hackspaces and labs. @winnieponcelet has been in touch with most of them. Also @alberto and @melancon may have some helpful suggestions or contacts. @mitsu_hadeishi is somehow involved at the intersections of health and tech in SF. Maybe @noemi has more suggestions?
\n\nOk those are top of mind
hello
no we are not funded
we work together with our own money and potential
i will be looking at the links you sent me
hope to here from all of you guys soon
Finance and admin. Tell me about it. If you guys are funded it might be easier. IN any case I think @ivan might have some suggestions. Also @ericasmar might have suggestions at least for Marocco. @hegazy has/is setting up a startup in Egypt and may also have some recommendations?
\n\nOn a different note, I\'m curious what you think about @irene_lanza \'s project on use of technology for managing disabilities- you can read about soundsight here : https://edgeryders.eu/t/introducing-soundsight-training/5084
\n\nI think @maria has been looking deeper into the project so she may also be able to share some reflections relevant to your project. Also several of the community members in the OpenCare research conversation have experience in building assistive technologies...maybe have a look here ... https://edgeryders.eu/c/opencare
', u'post_id': 34582, u'date': u'2017-08-24 14:12:23'}, {u'user_id': 3516, u'title': u'Hi Zmorda, currently we are working with normal ', u'comment_id': 34620, u'content': u'Hi Zmorda, currently we are working with normal double jearsey and will sew all the components on the glove, but we are looking foreword to experiment with conductive/resistive textiles and threads. Right now we have a contact, thanks to WeMake makerspace, with INNtex (http://www.inntex.com/), but we would love to hear from you more. Let\'s keep in touch! Sara & Mauro
', u'post_id': 34199, u'date': u'2017-08-23 10:18:31'}, {u'user_id': 3516, u'title': u'Hi Alberto! We explained a lot about rehub ', u'comment_id': 34618, u'content': u'Hi Alberto! We explained a lot about rehub glove here: https://edgeryders.eu/t/rehub-rehabilitation-glove/6600 . Briefly our glove has 6 flex sensors, 5 pressure sensor and a gyroscope/accelerometer to monitor and collect data about the hand\'s movement. Thank you for your interest Mauro & Sara
Hi Sara & Mauro , I am textile Engineer if you need help or some recommendations for the raw mat\xe9riels I would be happy to help and contribute in any way I can.
', u'post_id': 34199, u'date': u'2017-08-23 09:01:15'}, {u'user_id': 4, u'title': u'@rehub \u2013 Mauro and Sara, this is supercool ', u'comment_id': 34601, u'content': u'@rehub \u2013 Mauro and Sara, this is supercool stuff! But I must have missed some earlier post: what is the electronics on the glove for?
', u'post_id': 34199, u'date': u'2017-08-22 21:51:10'}, {u'user_id': 1935, u'title': u'hey @arbi.chouikhaccessibility is a crucial issue that used ', u'comment_id': 34580, u'content': u'hey @arbi.chouikh
accessibility is a crucial issue that used to be overlooked by city planners and mapping is one way to make our cities accessible.
I am no expert in mapping also but normally I tend to go for Open street Maps as there is an active community that helps with the mapping.
but outside of mapping some public interactions to draw awareness is also helpful. I took part in some of these accessibility tours in Berlin, where people get the chance to experience the city with wheel chairs or eye blinds, and see for themselves if their neighborhood accessible and friendly enough or not. am not sure if this tours can make sense in tunisia or not but it could be an idea, if you are interested I can link you together to cooperate with the berlin group.
also in berlin another they are using is this kind of posters saying "unfortunately we must stay outside "( Wir m\xfcssen leider drau\xdfen bleiben) to encourage even private business to have a barrier free entrances.
Huh... I am no expert (but some here are: for example @mstn, @elf_pavlik, @napo and @simonecortesi). I have never studied this in detail. But:
\n\nSo, it seems that (in theory) you could build an added value application on top of OSM as of Google. The difference is that Google data are not plastic the way OSM data are: any edit to the Google database you have to ask for, then wait and hope, whereas in OSM you can just go ahead and make the edit yourself. This has big implications in terms of building community and awareness. For example, you can organise mapping parties.
\n\nBesides this technical issue, you might enjoy the work that the City of Milan is doing in a similar vein: trying to build cheap, simple solutions for shopkeepers to make their shops wheelchair accessible. This initiative is spearheaded by @rossana_torri and @alessandro_contini; @federico_monaco is observing it closely. The project is called Open Rampette.
', u'post_id': 34541, u'date': u'2017-08-21 16:49:48'}, {u'user_id': 3772, u'title': u'Hello @alberto, thank you so much for your ', u'comment_id': 34569, u'content': u'Hello @alberto, thank you so much for your comments!
In fact, I have studied Wheelmaps and I wheel Share also, but there are three major issues:
- You can\'t implement DataAnalysis tools through Open Street Map;
- You can\'t have the itinerary to the identified place in terms of accessibility;
- When you map (and/ or mark) a new place, the accessibility basis are very standard the time that the norms are different from a country to the other;
This is in addition to the fact that the process in Wheelmap is not that simple. That\'s why HandYwiN is basing on Google Maps, which affords you many options including the itinerary and the feedback of others through the Google Maps app. Moreover, HandYwiN provides 10 simple questions (if you check that means yes, and if you keep it unchecked it means no).
\n\nPlease don\'t hesitate if you have any interaction.
\n\nBest
', u'post_id': 34541, u'date': u'2017-08-21 16:22:08'}, {u'user_id': 4, u'title': u'Hello @arbi.chouikh, welcome from me too. \n\nThis is ', u'comment_id': 34567, u'content': u'Hello @arbi.chouikh, welcome from me too.
\n\nThis is much needed work, congratulations! I imagine you will be familiar with Wheelmap (this is Tunis, for example). How is HandYwiN positioned with respect to it? You could easily import all Wheelmap data, because they commit onto the OpenStreetMap database, so all the data are open. This would populate your platform immediately. At the same time, you could also contribute your own data to OpenStreetMap, so you would be helping to enrich it for yourself and others.
\n\nThe presence of accessibility data on OpenStreetMap means that it is going to be difficult to make money selling access to digital maps of wheelchair-friendly places, when the world\'s largest such map is online for free. On the other hand, you will have the benefit of concentrating of the other functionalities of your platform you mention above.
', u'post_id': 34541, u'date': u'2017-08-21 15:53:50'}, {u'user_id': 3703, u'title': u'Welcome on board Arbi ', u'comment_id': 34544, u'content': u'Welcome on board Arbi
It's very designery and elegant. Very Milan!
", u'post_id': 33905, u'date': u'2017-08-21 16:48:36'}, {u'user_id': 3622, u'title': u'Added a section for ticket registration - http://festival.edgeryders.eu/ ', u'comment_id': 34450, u'content': u'Added a section for ticket registration - http://festival.edgeryders.eu/
', u'post_id': 6267, u'date': u'2017-08-17 11:41:50'}, {u'user_id': 8, u'title': u"I think it's beautiful work, everything. I'd still ", u'comment_id': 34317, u'content': u"I think it's beautiful work, everything. I'd still ask to put up a page with registration information. Even if it just to point out the information above so more people can find their way in if they want and or understand how we are wired in general as a tribe.
", u'post_id': 6267, u'date': u'2017-08-13 12:35:50'}, {u'user_id': 3, u'title': u'Yes because in practice it ends up that ', u'comment_id': 34310, u'content': u"Yes because in practice it ends up that there's no difference between participants so far - everyone is involved somehow and contributes sessions or work + we didnt really sell any tickets.
The registration (on festival.edgeryders.eu and in practice too) is down to emailing community@edge...eu and receiving instructions for contributing stories.
What do you think? Fond of our initial setup?
", u'post_id': 6267, u'date': u'2017-08-13 08:39:19'}, {u'user_id': 8, u'title': u'@noemi and @owen guys this information is missing ', u'comment_id': 34270, u'content': u'@noemi and @owen guys this information is missing from the festival website as far as I can see...
', u'post_id': 6267, u'date': u'2017-08-11 11:10:33'}, {u'user_id': 3, u'title': u'Thanks so much for the attention and patience ', u'comment_id': 34255, u'content': u'Thanks so much for the attention and patience to read through @georgie. While healthcare is free for all in Romania - the problem is the miserable infrastructure - from hospitals not equipped, lack of medicine, all the way to poor hygiene. It\'s gotten to the point where its dangerous to put yourself in the hands of the system.
\n\nI\'m looking forward to meet you in October, hopefully you can make it. I see people like you and Vlad who are young and courageous enough to stick around as the ultimate hope
HI Noemi,
\n\nIm just having a browse through some edgeryders articles and came across your post from last year. Couldn\'t leave without saying how much your stories moved me. Its so interesting to read about a corrupt and failing system. Im sorry to hear that your people, family and friends have to suffer through it and live with the ever lingering anxiety of how to provide healthcare for the elderly and ageing population. It\'s amazing to realise how different the structure is here in the UK where healthcare and social support is free for all. I have often been critical about the impact of free healthcare on the complacency of families to neglect and dismiss their elders to the care of the state, often with huge and high expectations of what the state can and should provide. I think it has contributed to a fractured family structure in society with sometimes little care and responsibility of families to look after their loved ones. There is an enormous financial burden that is placed on the NHS with the ageing population, to have them pick up the bill for every person in a care home is unsustainable and to some degree unfair on the system itself.
\n\nReading this however, I can appreciate a little more the enormous pressures that is put on family and friends when this support does not exist. It is inspiring to hear of people such as Vlad Voiculescu who come into support others in an otherwise neglected area. There is amazing potential for the redistribution of wealth (and wealth in health care provisions). The money is out there and the provisions most definitely are as well, they are just not spread evenly!!
\n\nAs always we may hope on a middle ground, with services available for the elderly, looking after their specific health care needs. But I would hope that family involvement would always be encouraged and part of a sustainable system. Even within a globalised world we still hope for community.
Thanks.\xa0It's not just you, I had read your Amish related post and at the time was just working on this one on my own.\xa0So clearly there is something there about tightly knit communities making decisions together and planning thoroughly their care system - investments and returns.
\n\nAs to the cytostatics, you're right - I will ask Vlad\xa0and common friends to make a connection and take it from there. Of course, establishing causal links between someone setting up a massively effective thing like this network or the Greek clinic and their recruitment into politics is more complex. As far as I know\xa0Vlad is also VP in the\xa0European Cancer Patient Coalition and organises an annual camp for children diagnosed with cancer. So there are credentials backing up his current position.
", u'post_id': 685, u'date': u'2016-05-26 19:28:53'}, {u'user_id': 4, u'title': u'What. The. Hell.', u'comment_id': 7465, u'content': u'@Noemi, this is probably your best post yet. You knocked me right out there.\xa0
\n\nI need to think more about your questions in bold. It seems you have in mind an Amish-like solution \u2013 or is it me being under the influence of that article?
\n\nBut I do know this: OpenCare needs to know more about the Cytostatic Network. I appreciate your friend Vlad is "busy", but I am sure you can dig out someone who was in the front line of the Network. That\'s an OpenCare Fellowship right there.
\n\nMaria, the woman in the Helliniko Community Clinic, told us that the doctor who started the original community clinic (the one in Rhodhes) had just been appointed minister in the reshuffled Tsipras administration at the time of our visit there (October 2015). If this is a pattern, it\'s a very interesting one.\xa0
\n\nHow about getting in touch and offering to partner up for an event on open care in Bucharest? I\'m completely improvising, but... open care bootcamp? Showcasing this sort of "shadow govt innovation"?
', u'post_id': 685, u'date': u'2016-05-26 18:27:49'}, {u'user_id': 3597, u'title': u'Thank you @federico_monaco for your excellent review!We are ', u'comment_id': 34223, u'content': u'Thank you @federico_monaco for your excellent review!
We are working hard and in September we are going to organize a Design Thinking meeting with a group of restaurateurs and their staff.
We think that the Design Thinking method is the right way to create empathize and define or reframes the problem in human-centric way. Please, follow and support us!
Thank you! You have stated such vital points so clearly here. Really great to read this.
\n\nYour theme is really excellent. If it fits to have an entirely optional session first thing in the morning at the Open Village for anyone who wants to come share the dream they had in the night, I\'d love to facilitate this under your theme. Been working with this for some years and am always amazed by way this space for expression nurtures relations and community. Let me know how best to offer - posted some thoughts after our call here https://edgeryders.eu/t/open-village-call-19-july-2017/6506/3
', u'post_id': 33930, u'date': u'2017-08-09 08:01:18'}, {u'user_id': 3622, u'title': u'The craft gestures themselves - chiseling, sawing, hammering ', u'comment_id': 34081, u'content': u'\n\nThe craft gestures themselves - chiseling, sawing, hammering - create new neural pathways, working with the brain\u2019s plasticity to erase negative past patterns. But it\u2019s also something about the immediacy of the experience; its embodied; its not abstract that is immensely important. And that you are engaged in producing something where you have a relationship to the end use in ways that is no longer so often the case in our global marketplaces.
So beautifully written, something profound in your observations on agency through craftsmanship (reminds me of this - https://youtu.be/0nxDro6THUg?t=16m20s).
\n\nThanks for sharing
', u'post_id': 33930, u'date': u'2017-08-07 15:42:20'}, {u'user_id': 4, u'title': u'What a beautiful, thoughtful post! Thanks so much ', u'comment_id': 33990, u'content': u'What a beautiful, thoughtful post! Thanks so much for sharing. I am on awe of your stamina: building a thriving community and a social business, and staying with it for twenty years, and all this on top of a fight that was lost, not won! You should be celebrating your honorary doctorate at Hogwarts.
\n\nI took the liberty of moving this onto a sub category of OpenCare. I don\'t want @amelia to miss it!
', u'post_id': 33930, u'date': u'2017-08-04 19:04:15'}, {u'user_id': 3791, u'title': u' ', u'comment_id': 38828, u'content': u'', u'post_id': 34115, u'date': u'2017-10-27 15:29:28'}, {u'user_id': 3791, u'title': u' ', u'comment_id': 38827, u'content': u'', u'post_id': 34115, u'date': u'2017-10-27 15:29:23'}, {u'user_id': 3367, u'title': u'Love the name! ', u'comment_id': 34169, u'content': u'Love the name!
', u'post_id': 34115, u'date': u'2017-08-08 16:44:43'}, {u'user_id': 3, u'title': u'I love how this session is framed and ', u'comment_id': 34168, u'content': u'I love how this session is framed and I\'m glad we spend time looking at who could be conversation openers aka panelists.
By the way @nicole is in za house!
ping @nadia
', u'post_id': 33887, u'date': u'2017-08-08 13:26:10'}, {u'user_id': 5, u'title': u'You got that right: topics are in exactly ', u'comment_id': 33959, u'content': u'You got that right: topics are in exactly one category, but can have multiple tags.
\n\nGuidelines for user-contributed tags are needed (and coming). For now, you can use project-* tags to keep project content together. For example: `project-open-rampette".
(The meta tags like challenge response will vanish eventually. We only need them for a time after the software migration for content sorting tasks.)
Hi @nadia
\n\nThe issue came from the other "categories" (ie open insuline, how-are-you-using-diy-opensource-solutions, maker-in-residence) that are partially in the Product Design.
\n\nFrom what I\'m seeing the category are more similar to the old challenges therefore almost all the post are related to the UDK challange and activities.
\n\nCorrect me if I\'m wrong @matthias but a post can be in a category but can have many tags. If I correctly understand my suggestion is:
\n\nOh sorry, ^^ was directed to @costantino
', u'post_id': 33887, u'date': u'2017-08-03 10:14:34'}, {u'user_id': 8, u'title': u'Product design is a category [ie Meta category]. ', u'comment_id': 33921, u'content': u'Product design is a category [ie Meta category]. The idea here is to keep things simple until there is a need for more distinctions. You can propose in a subcategory for what you want and we can discuss it internally in the team. If there is a consensus then it is created. Works?
', u'post_id': 33887, u'date': u'2017-08-03 10:14:05'}, {u'user_id': 5, u'title': u'This change was proposed by @nadia. Over to ', u'comment_id': 33919, u'content': u'This change was proposed by @nadia. Over to her.
', u'post_id': 33887, u'date': u'2017-08-03 09:40:55'}, {u'user_id': 3746, u'title': u'@johncoate Hi John, There is some confusion because ', u'comment_id': 34018, u'content': u'@johncoate Hi John, There is some confusion because what one or two countries call a Limited Liability Partnership is what we in the UK call a Limited Partnership, where there is a General (Managing) Partner with unlimited liability (albeit they may be limited companies etc) and Limited Partners whose liability is limited to their investment but have virtually no management say.
\n\nThe UK LLP does not even require a written agreement since simple default provisions apply in the absence of agreement to the contrary (eg equal %age shares; all members must agree to a new member). LLPs are very useful for people businesses and are widely used as development vehicles for new assets.
\n\nThe closest US equivalent to the UK LLP is the Limited Liability Company (LLC) just to confuse things even more.
\n\nIn tax terms the UK LLP is \'tax transparent\' (or what the US calls \'pass through\') which means the taxman treats it as a partnership and taxes you on income or gains received through it as though you are a partner, as distinct from a member of a collective.
', u'post_id': 33485, u'date': u'2017-08-05 21:35:53'}, {u'user_id': 2915, u'title': u"Doesn't an LLP usually have a Managing Partner? ", u'comment_id': 33697, u'content': u"Doesn't an LLP usually have a Managing Partner?
", u'post_id': 33485, u'date': u'2017-07-29 14:02:51'}, {u'user_id': 3746, u'title': u"Ideally, there are no 'costs' as all of ", u'comment_id': 33695, u'content': u'Ideally, there are no \'costs\' as all of these are converted to revenue/production sharing partners.
\n\nI have long used the incredibly simple UK Limited Liability Partnership (LLP) as a framework for risk/ revenue sharing (as was recounted by @gehan in her narrative) for the purpose of co-creation of new productive assets.
\n\nNote that membership of a UK LLP is not restricted to UK persons, and that it is a \'tax transparent\' or \'pass through\' vehicle whereby each member must make his peace with the tax-man in his own jurisdiction on income or gains generated through membership.
\n\nIt is possible to use US LLCs for the same purpose, and also to use simple unincorporated partnership agreements as complementary/additional development frameworks, on any scale.
\n\nIrreducible Costs and Revenues are shared and allocated on the basis of what is fair and equitable between the stakeholders. This requires a transparent \'open book\' approach and I have found ta trusted third party facilitator/mediator \'honest broker\' to be a crucial service provider in respect of this crucial function of (subjective) relative valuation.
\n\nIt is also essential to have a governance arrangement whereby these allocations may be varied dynamically with the evolution of the project.
', u'post_id': 33485, u'date': u'2017-07-29 11:27:17'}, {u'user_id': 4, u'title': u'I think you are saying that joint stock ', u'comment_id': 33693, u'content': u'I think you are saying that joint stock corporations and double entry accounting can be hacked. This is true. But, in fairness, so can most things. We have infamous and recent examples for social cooperatives and blockchain implementations.
\n\nI am curious about the revenue sharing (as opposed to profit sharing) idea. How are costs covered? How is revenue allocated?
', u'post_id': 33485, u'date': u'2017-07-28 22:05:15'}, {u'user_id': 3746, u'title': u'My action-based research is all about prototyping and ', u'comment_id': 33652, u'content': u'My action-based research is all about prototyping and proof of concept, because the only way to change a paradigm is to demonstrate the new paradigm in practice. That is how I hope to work with @gehan in months to come and I think that edgeryders rich international resource of skills, innovation, insight and experience could well be instrumental in successful practical implementation of new (actually, ancient) models.
', u'post_id': 33485, u'date': u'2017-07-27 14:05:51'}, {u'user_id': 3746, u'title': u"My approach is via the 'adjacent possible'. I ", u'comment_id': 33651, u'content': u"My approach is via the 'adjacent possible'. I have learnt the hard way not to try to change what exists.
\n\nNothing I advocate competes with or attempts to alter existing structures and instruments. Risk and revenue/production sharing agreements and instruments pre-date modern finance capital by millennia and are therefore complementary to it. In many parts of the world they remain routinely in use, even if not necessarily documented.
\n\nIt is quite clear that implementation of these methods 'out-compete' existing finance capital, which will simply wither on the vine. The fundamental reason for this is that being a middleman (whether public or private) is very intensive in finance capital whether embedded in productive assets or necessary to cover market and credit risk.
\n\nSo 'smart' service provision essentially replaces finance capital with 'intellectual capital'. A good example of such a 'smart trade' is the example of James Watt in 1778 who allowed tin-mine owners to have the use of his new steam engine (IP) powered water pump in exchange for a third of the coal they saved. ie Pumping as a Service displacing Pumps as a Commodity.
", u'post_id': 33485, u'date': u'2017-07-27 13:59:48'}, {u'user_id': 3362, u'title': u'@chrisjcook I think I was mainly trying to ', u'comment_id': 33639, u'content': u'@chrisjcook I think I was mainly trying to give my perspective. I agree with all you wrote. But then I ask myself: now what?
\n\nWhat I wonder comes down to "change what exists" vs. "build better from the ground up". Changing what exists seems to be a (very) slow process. I\'m involved in building the new and although our vision of the future is similar to the one you present, it seems nigh impossible to implement. What would be your advice for us?
\n\nI guess slow and process are the key words in changes like these.
', u'post_id': 33485, u'date': u'2017-07-27 10:17:47'}, {u'user_id': 3362, u'title': u'That helps, thanks! ', u'comment_id': 33638, u'content': u'That helps, thanks!
', u'post_id': 33485, u'date': u'2017-07-27 10:06:44'}, {u'user_id': 3746, u'title': u'The agreements and instruments I work with are ', u'comment_id': 33634, u'content': u'The agreements and instruments I work with are generic and agnostic as to the nature of the types of value being generated by human interaction with each other and with our environment.
\n\nBut the key point is that they enable direct \'Peer to Peer\' and \'Peer to Here\' connections and risk/production & revenue sharing without the intermediation/dominance of those who extract \'something for nothing\'.
\n\nThe \'value proposition\' will of course vary as between the infinite types of value creation and exchange possible, but the fundamental value proposition which I am proposing is simply stated.
\n\n"Would you rather have 100% of nothing or a smaller %age of something valuable to you?"
\n\nOf course there are psychopaths and sociopaths whose motivation is dominance over others and who would prefer simply that others get nothing. But the vast majority of people take a different view. As H G Wells said the only thing stronger than the will to power is the will to freedom (from domination by others).
\n\nI created a neologism for the multi-stakeholder agreements I advocate -
Nondominium. The key governance element of a Nondominium agreement is that every stakeholder who consents to the agreement has certain veto rights of governance in relation to matters that concern them.
@alberto There are two problems with any \'Joint Stock\' corporation where ownership is distinct from other stakeholders (eg suppliers, customers, staff, management, financiers).
\n\nFirstly, the sheer complexity of the protocols necessary to rectify the conflict between owners and stakeholder groups bilaterally, and secondly the conflict between the interests of the different stakeholder groups.
\n\nSecondly, there is the intractable \'principal/agency\' problem of the conflict of interest between owners and managers which invariably leads to hierarchy and managerialism - the \'Iron Law of Oligarchy\'.
\n\nBoth of these may be addressed firstly through the use of \'open\' corporate entities and multi-stakeholder risk, revenue and production sharing agreements and secondly through what I call \'open capital\' - that is to say promises or credits returnable in payment for value (money\'s worth) in all of its forms, most of which are certainly not valued now.
\n\nThe question then arises as to what metric should be used for value exchanges.....
\n\nDouble entry book-keeping does not accommodate promises/prepay credits adequately (as we saw with Enron - which defrauded creditors and investors by using tripartite prepay arrangements) and that is why we need a transparent shared transaction/title repository which essentially constitutes a third \'triple\' entry.
', u'post_id': 33485, u'date': u'2017-07-27 07:58:53'}, {u'user_id': 854, u'title': u'Hi @winnieponcelet\n\nif I remember well the conversation we ', u'comment_id': 33600, u'content': u'\n\nif I remember well the conversation we had, here you are referring to the jatus between the value proposition (what an organisation declares to be delivering to the stakeholders, or a target subgroup of them most commonly), and the value chain, which should capture the entirety of needs that are satisfied, at the different scales of the organisation and its activity, to deliver that promised value.
\n\n...so, here, you would rather refer to the value chain, if I am right?
\n\nI hope this helps.
Marco
Ok, I think I get it.
\n\nYou seem to be comparing two different pairs of concepts:
\n\nYou can build zero-interest, pooling resource corporations within most modern legal frameworks. You can even take a for-profit corporate form (in our case, an Estonian Limited Private Company), and then use your articles of association to establish whatever you want: "we are never going to take on debt"; we are not allowed to distribute profit until we have renovated the local school".
\n\nSimilarly, there is nothing stopping you using double entry accounting in the service of a promise-based corporation. It\'s a bit more complex than tally sticks, but much better at catching errors.
\n\nAm I in the right ballpark?
', u'post_id': 33485, u'date': u'2017-07-26 13:51:51'}, {u'user_id': 3362, u'title': u"@markomanka I realise my use of 'value proposition' ", u'comment_id': 33585, u'content': u'@markomanka I realise my use of \'value proposition\' here is not detailed enough to transmit what you meant by it in our conversation last week. Maybe you can expand on that.
', u'post_id': 33485, u'date': u'2017-07-26 10:17:47'}, {u'user_id': 3362, u'title': u"Hi @chrisjcook, nice to read you. I've gone ", u'comment_id': 33584, u'content': u'Hi @chrisjcook, nice to read you. I\'ve gone through your posts and links and your reply to @markomanka clears up some of the confusion he brought up. Yet I want to summarize to see if I understand correctly since I\'m no expert at all. It became a bit of a long post.
\n\nI understand a business model as the mechanism by which someone generates value and is compensated when they exchange it with someone. In my mind there\'s several elements to this mechanism (tell me if it doesn\'t make sense):
\n\nWhat I gather from what you wrote is are changes in the last two elements in bold, let\'s call them instruments and agreements (correct me if I\'m wrong). And that these would enable new ways of doing the elements in italic, let\'s call them the value proposition (according to @markomanka , if I\'m correct in the use here). Like the example you gave of artists: they would be able to create cultural value (execute their value proposition), because they are individuals in a Guarantee Society (new agreement & instrument). This enables either an established value proposition as a starting point, or would enable the artist to experiment with a new value proposition (with risk sharing through the default pool).
As somewhat of a pragmatist in trying to sustain a shared community space, I have to look from the side of new value propositions. Can we come up with new value, ways of generating value and find new target audiences? Within the standard instruments & agreements: using money and selling or renting.
Example: we develop and provide free education for underprivileged children through workshops (free). The educational content we developed is adapted to the formal education system through another series of workshops (material costs covered). Then we train teachers to use the material in the classroom (paid gig + profits to reinvest). Ultimately we sell our services as consultants and trainers in science communication (paid + profits to reinvest). We\'re aiming for a balance between all of them and are banking on the collective know how we build up.
\n\nFiguring this out and implementing it is hard work: market research, mastering a skill and trade, finding partners, team collaboration, admin, ... And that for each of the steps described. Moreover, they have a clear time element: there is no shortcut for the learning curve of the people involved and there\'s simply only 24 hours in a day to do all the work.
\n\nAlthough the implementation of new agreements and instruments is easier in a new project (no legacy of habits and outdated worldviews of key people), they usually don\'t have the time or resources to do that (let alone having enough time for their value proposition). And from experience, actions must have an advantage that increases chances of survival in the short term. The costs and risks are too high otherwise. You are often screwing yourself if you do not use the readily available agreements and instruments.
\n\nThose who do have the means to try to implement new agreements and instruments, usually keep looking at the short term anyway, or they don\'t have it specifically on their mind, or it is a watered down version that comes back to short term benefits. Like big financial institutions trying to adopt blockchain these days.
Therefore I think focussing the business model narrative on agreements and instruments is not representative of reality. Value proposition plays a bigger role in my view. I\'m taking the perspective of a new or struggling project, as these are the majority of the projects I\'m in touch with. They are usually also those taking the longest shots at change.
The cool thing about the design you describe is that a collective of established business/organisations/individuals would be able to carry the risks involved for new or struggling projects adopting new agreements and instruments. Moreover they have incentive to provide know how, network and help in implementing it. Benefits also go both ways, in terms of diversity and room for experimentation.
\n\nThe advantages are many. It\'s being attempted with various mechanisms and varying success, see eg. Enspiral and Transforma Bxl or Civic Innovation Network.
\n\nVarying success, because it is not an easy thing to implement: bringing together parties, setting rules, navigating obstacles, ... It also has to come as an initiative of a party willing to invest time and resources for the unavoidable coordination costs, at a considerable risk of failure. Those who are aware, willing and capable are rare. Thus the fertile ground (or market opportunity) for third party services facilitating such a network, is not really there yet I think.
\n\nIn conclusion, I think there is an order to things. To me, it makes sense to start with the value proposition and then evolve towards adopting new agreements & instruments when the capacity is there, after bridging a risky startup period.
\n\nMy two cents, as someone that has been involved in failed attempts at setting up such a network from the perspective of a new project. Curious to read more thoughts!
', u'post_id': 33485, u'date': u'2017-07-26 10:06:56'}, {u'user_id': 3746, u'title': u'Thanks @markomanka for your queries.\n\nDouble-entry book-keeping entries records ', u'comment_id': 33544, u'content': u'Thanks @markomanka for your queries.
\n\nDouble-entry book-keeping entries records value transactions and rights of ownership & use as between market counter-parties. Each party keeps his own records independently using debit and credit entries. However, double entry book-keeping records transactions which take place within a market paradigm of legal relationships (agreements - such as mortgages, limited liability corporations) and claims over value (instruments - such as equity ownership, debt and derivatives). This paradigm has evolved and become more and more sophisticated over time and has led to an unsustainable concentration of wealth.
\n\nTo use a sporting analogy, agreements are analogous to the rules of the game while instruments are analogous to the implements of a game such as bat and ball.
\n\nThe problem with double entry book-keeping is that its associated paradigm of absolute rights of ownership and use and \'for profit\' commodity transactions makes risk and production sharing difficult if not impossible. We hear a lot about the sharing economy, but simply put, shareholders (in a Joint Stock Company) are fundamentally incapable of sharing.
\n\nThe split tally stick provided a record not only of conventional debt instruments but also of the simplest instrument of them all, the credit instrument or promise. This undated promise/credit instrument actually pre-dates all other instruments, and promises required a trust framework of implicit or explicit risk and production sharing agreements.
\n\nI believe that through using the correct combination of credit instruments/promises and risk, revenue and production sharing agreements it is completely possible to create a new and resilient economy bottom up and moreover to do so without requiring any permission from any third party.
\n\nFor risk sharing I advocate a \'guarantee society\' agreement of which the best example is the Protection and Indemnity (P&I) Club in the shipping industry. Here we have seen for 140 years ship owners clubbing together (and employing a manager) to mutually assure risks that Lloyds of London (\'for profit\' risk intermediaries) will not take.
\n\nThis article illustrates how local credit risk might be assured using the same risk sharing approach.
\n\nFor production and revenue sharing we may use simple partnership agreements as referred to in my discussion with @gehan, and for long term funding of productive assets we may issue, and accept in exchange in payment for use, the credit instruments referred to.
\n\nSo in relation to Open Care I believe that it is possible to create new \'Care for Land Use\' swaps whereby in exchange for caring for People, Place or both, then carers may receive credits which are returnable in payment for residential or other use of land, or in payment for food production derived from land use.
\n\nI envisage networks of carers - possibly using an 21st C quasi-guild approach - who share costs of a care platform (eg transport, scheduling, equipment, training and so on). In exchange for providing care, then carers may receive credits which they can use against essentials such as housing and energy use.
\n\nIf (as it appears) you are interested in the application of financial technology (Fintech) you might find my article on Fintech 2.0 of interest
', u'post_id': 33485, u'date': u'2017-07-25 00:08:40'}, {u'user_id': 854, u'title': u'Thank you @gehan for sharing this...\n\nSInce, @chrisjcook, you ', u'comment_id': 33524, u'content': u'Thank you @gehan for sharing this...
\n\nSInce, @chrisjcook, you are online here (a pleasure to e-meet you), I would like to ask you to expand a bit about the example of the tally sticks.
Double entry book-keeping is a more formalized way of dealing with credit/debit, and the sticks do not allow anything, to my knowledge, that is impossible be the former... While I appreciate the importance of contract incompleteness and emphasis on trust and sharing stakes, I get a bit confused by the reference to the tally sticks.
Thank you in advance
...and if I may add one question: although the definition is of business models\' collectivist, the blog entry seems to emphasize a list of governance legal frameworks... could you share with us something about business models, and specifically some examples you suggest we should study in OpenCare?
', u'post_id': 33485, u'date': u'2017-07-24 12:19:45'}, {u'user_id': 3746, u'title': u"Thanks @alberto \n\nIt's a small world. I've known ", u'comment_id': 33496, u'content': u'Thanks @alberto
\n\nIt\'s a small world. I\'ve known @patrick_andrews a good long while and we did a little bit of work together maybe a decade ago on a very interesting enterprise - Riversimple - which has been (and still is) beavering away on building the world\'s first open source car.
\n\nPatrick and I clearly have some unfinished business on the subject of the right business model for Mobility-as-a-Service as part of the development of legal IP/funding platforms with general application.
', u'post_id': 33485, u'date': u'2017-07-22 14:22:57'}, {u'user_id': 4, u'title': u'Welcome @chrisjcook! As I said, I want to ', u'comment_id': 33495, u'content': u'Welcome @chrisjcook! As I said, I want to write a thoughtful response to this. Meanwhile, glad you are here. As I read the post, I could not help thinking about @patrick_andrews: you collect business models, he collects governance models (he calls his area of interest "human organising"). It would be fun to hear the two of you hash it all out.
What a pleasure it was to catch up with @gehan again in Glasgow. Just a word of warning about Open Capital It\'s useful historically and for context but there\'s an immense body of work out there since then....one day I might try and pull it all together!
\n\nI look forward to working with Edgeryders on the agreements and instruments necessary to mobilise resources to achieve mutual/common goals.
', u'post_id': 33485, u'date': u'2017-07-22 14:03:31'}, {u'user_id': 4, u'title': u'@gehan just a one-liner to let you know ', u'comment_id': 33488, u'content': u'@gehan just a one-liner to let you know I read this with great interest. I will write a proper comment when I get back from my trip.
', u'post_id': 33485, u'date': u'2017-07-22 12:39:25'}, {u'user_id': 4, u'title': u"I had managed to miss this post! It's ", u'comment_id': 33996, u'content': u'I had managed to miss this post! It\'s clearly an interesting point in the trajectory of open source wetware.
\n\nThis decentralised stuff was never easy, for anyone. But biotech has an additional regulatory hurdle, which software hackers do not have. Hardware hackers do have it: Davide Gomba, an A-list Italian hardware hacker, once told me that regulation forbids people in the makerspace to touch the power tools, unless they are employees of the space itself! But you wetware guys are really in the regulator\'s crosshairs.
\n\nHopefully technologies like cell-free extracts will help with regulation, and microfluidics will help with cheap raw "experiment scalability". But in the end, I think Malcolm is really really right: at the end of the day, open source hackers need to bite the bullet and redo the work from scratch, but this time with the right license. Stallman and Torvalds and the others, they had to redo what other had already done. GNU/Linux was, at the beginning, a poor relative of Unix: but it was open, so it could be improved.
\n\nAnd once that was done, you still had the problem of figuring what the hell was going on in the code that you were supposed to improve upon. Turns out hackers are better at getting code to run than at documenting it. Vast amounts of time are spent in trying to decipher code which is legally open, but hard to understand and therefore not really actionable. This is similar to your struggle with following up on the work already done in Oakland on insulin. Slowly, the toolkits emerged: in-code commenting practices, wikis, GitHub... there may be something to port to wet hacking there.
\n\nMoved the topic to OpenCare, so @amelia does not miss it. I added the blog tag, which is how we will implement our blog in the end.
Great! See you there @7pm
', u'post_id': 33594, u'date': u'2017-08-02 09:35:00'}, {u'user_id': 3580, u'title': u"I'll join ", u'comment_id': 33902, u'content': u"I'll join
", u'post_id': 33594, u'date': u'2017-08-02 08:08:21'}, {u'user_id': 3367, u'title': u'Tentatively put time after dinner on the first ', u'comment_id': 33897, u'content': u'Tentatively put time after dinner on the first night for arts/demo. Also maybe take the time for "harvesting" on the first night and use that for the presentations.
', u'post_id': 33635, u'date': u'2017-08-01 21:59:01'}, {u'user_id': 137, u'title': u'Great, i can do it both - i ', u'comment_id': 33704, u'content': u"Great, i can do it both - i could easily do it as an exhibiton, not as a session even. Let's see how much time and space in the program we have and then I can adjust.
", u'post_id': 33635, u'date': u'2017-07-29 14:35:44'}, {u'user_id': 3, u'title': u'Is there any way we can include this ', u'comment_id': 33686, u'content': u'Is there any way we can include this in a batch of evening sessions : art presentations + screenings?
\n\nWe can do a combo with @albertorey \'s session + documentary about Bagmati River. Since you two are the only ones so far presenting work in SouthEast Asia. I know sessions are still being shaped up, which is why I dare proposing this. Feel free to scrap it if your work is more selfcontained and should stand alone.
\n\n@matthias could also propose a documentary about an indigenous community in Rukum, Nepal. We saw one last night which was astounding, but there\'s another one he recommended - 20mins.
\n\nI think it makes sense to have imaginative sessions where we travel to wordly villages of sorts
cc @woodbinehealth who is just now putting together our festival program, version 1.0.
', u'post_id': 33635, u'date': u'2017-07-28 14:56:51'}, {u'user_id': 3367, u'title': u'@Georgie thanks so much for your post and ', u'comment_id': 33896, u'content': u'@Georgie thanks so much for your post and sharing your story. And I agree that it is so easy to fall into the cynicism of everything is "fucked" or what not. There is a courage in being able to look into the bleakness and not try to cover it up with some corporate blank "positivity" but rather seeing the world as it is and finding the beauty in the process of building a new world, together. Glad you found this community! We\'re hosting the "Revolutionary Care: Building health autonomy" theme at the Opencare festival. I\'d be interested in hearing more about your story and ways we can collaborate. Maybe we can set up a voice/video call in the near future? Message us through this platform or email woodbinehealth@gmail.com. Be well and take care!
', u'post_id': 33523, u'date': u'2017-08-01 19:21:14'}, {u'user_id': 4, u'title': u'Amen to that, brother. ', u'comment_id': 33702, u'content': u'Amen to that, brother.
', u'post_id': 33523, u'date': u'2017-07-29 14:28:07'}, {u'user_id': 2915, u'title': u'\n\nGeorgie:\nI would love to take part in a ', u'comment_id': 33698, u'content': u'\n\nWe ought to put that as a banner across the front door: Here cynicism does not prevail.
', u'post_id': 33523, u'date': u'2017-07-29 14:10:08'}, {u'user_id': 3756, u'title': u'Hi folks thank you so much for your ', u'comment_id': 33694, u'content': u'Hi folks thank you so much for your welcome response. I feel the open village festival is calling me I shall have a little look at the links you have sent me as well as take a tour through some of the interesting comments and reflections people have made.
We were fairly resource poor in terms of medical equipment and medical supplies. Pharmaceuticals were relatively easy to get out hands on, we relied heavily on donations of gloves, swabs, betadiene, tape, scissors, sterile fields and other small practical equipment from visiting healthcare providers from nearby Spain and Italy. They were sporadic, but on reflection it would have been very difficult without them or at the very least very expensive trying to source them over the counter. Unfortunately the whole area was destroyed and the migrants were gathered up and packed off to camps! the clinic was also bulldozed. It would be interesting to hear if any one had any bright idea about supply chains and resource/ equipment management in these "pop up" type clinics. I know @michael_dunn is doing so work on emergency mutual aid of which supply chains may be a small but important feature.
I also really liked the Health Autonomy at the End of the World, written by @woodbinehealth. They paint a rather bleak picture of the breakdown and cut backs in healthcare structures within America. I whole heartedly agree that we need greater health autonomy for the individual and population at large. I shall do some further reading and comment on the writing there.
\n\nMany thanks for your warm welcome. Ill look into booking some time off for the festival
Great to meet you @Georgie! It does seem there is a good match between you and this crowd.
It\'s a great story you have here. It\'s intriguing how a trauma nurse played an important role. In the context of OpenCare we have been following @ybe and her Trauma Tour. She is a trauma therapist herself... is there a pattern there?
', u'post_id': 33523, u'date': u'2017-07-25 12:33:43'}, {u'user_id': 3, u'title': u'What you wrote is an inspiration @Georgie , ', u'comment_id': 33554, u'content': u'What you wrote is an inspiration @Georgie , am glad you found edgeryders.
\n\nMany stories of people coping with refugee crises - from many angles (@aravella_salonikidou \'s backpacks with basic aid, solidarity businesses, and also this story which I highly recommend about working in the camp - @alex_levene wrote it.
\n\nWhat were the resources you had, in the midst of running the clinic? Is it still going?
I\'d love it if you joined us for OpenVillage festival at the event - we\'ll be up to 60-80 people gathering to share the different kinds of work we are doing to deliver care in mostly less seen and informal ways. You can read about it in the Festival page (see menu above), but coming up is a draft schedule. There is however a lot of space for new ideas and projects: is there something which you would like to do, or people you\'d like to meet in such a gathering?
not super easy to reply due to the intricate burocracy.
briefly:
for a light solution as a "temporary ramp" the shop owner has to declare the presence of the solution using an A4 from + a small drawing + a "rendering" of the future solution (this is what we called LA PROCEDURA)
When you have all this docs you can send it to the office that check it and you are finally allowed to deploy the ramp when needed.
So this is a technical declarations that is now checked on the paper.
\n\nIn theory a policemen can go into a shop and check if the shop owner has the ramp + the docs OR the docs to certify that in the shop is impossibile to create a solution for the accessibility (produced by an Architect or similia)
\n\nIn the prototype described by Ale we worked on the current situation and we tried to streamline it.
\n\nIn the process we discover a lot of points to improve the overall situations --> from a part to a more general improvemetn
', u'post_id': 33291, u'date': u'2017-08-01 16:49:28'}, {u'user_id': 2915, u'title': u'How does the city want a shop owner ', u'comment_id': 33701, u'content': u"How does the city want a shop owner to make the ramp? Get a permit before doing anything, they tell you what they want you to make, and then have it inspected before it gets used? (That's how you have to do it in the US.) Make a new doorway or separate entrance just for that?
", u'post_id': 33291, u'date': u'2017-07-29 14:24:52'}, {u'user_id': 3143, u'title': u'I think we should ask a lawyer What ', u'comment_id': 33642, u'content': u'I think we should ask a lawyer
What we know so far is that if the entrance of Minerva\'s shop is facing a public street, then to make whatever kind of changes to the usage/aspect of the sidewalk itself (temporary or permanent) Minerva should ask permission to the Municipality (this is actually what the procedure is all about).
The Municipality is responsible to whatever happens (legally) to this sidewalk.
If at night you go and pour a concrete ramp in front of Minerva\'s shop then I guess Minerva should have an alibi that demonstrates she is not responsible of that action.
I mean, in the end Minerva will most probably face a local cop asking for explanation, not the Municipality itself...
Hm. Question. If I go by night in front of Minerva\'s shop and pour concrete so that a normal wheelchair can now get in, is Minerva still breaking the law? Is she breaking two laws? Does the city require that she pays a fine, takes the ramp down, then rebuilds it? Or do the two rule breakings cancel each other out? In the end, the ramp is there. The only damage was to the paperwork...
Hi @alberto, thanks for your feedback. Happy to hear you appreciate the work. I\'m just the tip of the iceberg here so let me publicly thank @iltype and the openrampette team for working on this during the past few weeks.
\n\nWe discussed the "punk" approach too. But what came out from co-design sessions was nonetheless a "desire" to comply to the rule, mostly for fear of repercussions and consequent fees.
We then decided to go less hacky and try fixing the existent for this first run.
It turns out that apparently the office in charge of the regulation is open to discuss the current state and form of the regulation itself, starting from the results of our research, and re-write the regulation (hopefully taking into consideration an approach like the wizard we propose).
Let\'s see how far it goes...
', u'post_id': 33291, u'date': u'2017-07-25 14:24:27'}, {u'user_id': 4, u'title': u'Great work as usual, @alessandro_contini. On the contrary, ', u'comment_id': 33510, u'content': u'Great work as usual, @alessandro_contini. On the contrary, you approach makes a ton of sense.
\n\nI tested your wizard, and it seems, frankly, great. This is the way govt online services are built when they are built well. A lot of the branches ended up on "contact a professional", but that\'s not your fault.
\n\nWith @costantino in Bordeaux we discussed a "more punk" approach of just doing it ("it" being your solution 3, the permanent concrete ramp) and getting the City of Milan of giving it a nod or at least looking the other way. But this is a separate discussion. If we do it by the book, I think this prototype solves the problem.
', u'post_id': 33291, u'date': u'2017-07-23 10:21:05'}, {u'user_id': 2754, u'title': u"Happy to read / proofread - though I'm ", u'comment_id': 33831, u'content': u'Happy to read / proofread - though I\'m ever impressed by the succinct writing on edgeryders*.
\n\nI\'m also happy to record interviews at Open Village and bring audio equipment.
\n\nThe Cascade was a variety of labs in galleries, hackspaces, on streets, with a different people flowing through. Heinously documented, not put online & though I remember saying the phrase "let\'s not bifurcate" a lot, ultimately the enthusiasm bifurcated...
\n\nThe bifurcation had a practical root - to do with resources, time, lack of funds to support it. Others wanted to steward the project but got distracted by their other work, families, health & could not. I did not realise that my leadership and initiation of the group was a vital component of its existence & my over emphasis on everyone\u2019s freedom was ultimately unhelpful to social organisation & cohesion. I took on the workshops and AV and continued carrying the torch - but ran out of money to keep living in Brighton where I was, moved out to the countryside & spectacularly ran out of energy at the CCC 2016. Still carrying this fire but agnostic about where I bring it. Now that I\'m in Petersfield UK - finding people who are working towards the area becoming a Transition Town, who are tending the river networks and are standing against the Oil drilling of the Weald. Every place has it\'s own needs.
\n\nOn the plus side of the cascade.network we didn\u2019t all destroy each other, or fall in love with each other and then destroy each other, which is a certain kind of success in group endeavours. The group experiment did not fall into wounds and trauma, sexual confusion, conflict and resentment. No one was nearly killed by the experience or driven half mad by it. We had a good knowledge exchange and the people it touched seemed opened, enlivened, emboldened.
\n\nBut\u2026 my focus is how to make the impulse & the work stronger & more effective because the intention is creative action & we are living in the context of this crazy risky moment of transition where nothing but completely radical action will do.
\n\nSo how to give something of real value & help shift a situation from not working or being actively toxic into health... I\'m thinking towards 2020 - that that year is a meaningful goal for clearly working together https://www.weforum.org/agenda/2017/07/these-experts-say-we-have-three-years-to-save-the-planet-from-irreversible-destruction/
\n\nHere\'s some useful stuff on ways of going about Creative Activism
\n\nOn the subject of planning bold meetings good stuff over at Centre for Artistic Activism
\n\nWhat we have learnt from history -
\n\n\n\n\n\n\n\n& great resources here http://yeslab.org/kb
\n\nNurture & Patience
\n\nYou are very right about the challenge of nurture and getting a group to nurture itself without needing constant encouragement by particular people. That kind of resilient self organised network comes through time, hard knocks & a shared understanding that if something is not working, that it\'s up to the person who is noticing to fix it, rather than complain/bitch/judge. The problem is that everyone is hardwired from how they\'ve worked in more traditional companies and notions of "the management". Sharing leadership & systems for swapping stewardship feel really vital to avoid burn out and for that longterm goal...
\n\nOne thing that helps is PATIENCE
\n\nWith ourselves -
\n\nthe last few years has been an extraordinarily painful personal learning about my weaknesses and ability to destroy my best efforts and not organise energy properly. Naivety is not helpful - I had a tendency to think that i could do many many things because I was animated by the feeling that it was vitally important. This feeling met the crushing realities of difference between people, everyday life, parenthood, resources and my real ineptness to use social media\u2026
\n\n& also patience with others
\n\nand with how human beings actually are.
\n\nI\'ve been on a great learning about personality and the limits of change. That well intentioned people might want to change, that knocks & failures certainly help shed naivety, but that changing habitual patterns takes time and support and is rarely complete. There\'s this realism emerging - mainly people only partially learn things and have a habit of remembering just a few things... We all tend to get swamped by our own lives sometimes. I like to think that I learnt about the problems of \u201ctrying\u201d to make something happen over the last few years, but then I look at my current state of affairs & realise that my tendency to "try" to make things happen and naive enthusiasm that this time it will all work out is still prompting my actions. Habits of action are engrained in our biology - there\'s a noticing and re-wiring that\'s possible... & difficult. As I (and many others) re-wire ourselves with respect to what we do not do well and work out how to genuinely put energy to good use and work together, there\'s a kind of hardcore deathless patience that\'s needed. Because we have to keep aware and change ourselves and how we work, whilst keeping on doing.
\n\n& If I\u2019m going to be real - I\u2019m not sure I\u2019ve noticed many people get astoundingly wiser about their own weaknesses or completely overcome the bits of their characters that tend to alienate, confuse, splinter, cause trouble for all. & that\'s part of the melting pot of being human, making trouble, being part of the trouble...
\n\nI wonder what a meeting that has a sense of complete and open welcome to everyone combined with a really compassionate understanding about people\u2019s limits and flaws might be. That feels like what you are aiming at in the Care Conversation. It feels a good place to start and avoids the problem we talked about around carers vs. those who need care.
\n\nMechanisms & sessions to get people creating & flowing
\n\nI\'m really excited by the move at the OpenVillage to genuinely learn through courageous experiment and in friendship, with all the learning of the last decades.
\n\nI\'d love to see group mechanisms for getting people to play to their strengths actively & creatively within the Open Village, because social situations can tend to split into spectators and active agents and - often - some of the best people, don\'t have any idea of what their strengths actually are or that they are allowed to use them. I\u2019ve packed up the idea that collaboration is going to be a balanced affair - but there\'s a joy in friendship, encouragement and acceptance of how other people are in the moment.
\n\nI wonder what mechanisms / games / workshops / group actions can be put in place that gets people to flowing together. I\'d love to come and do some group dreamwork. Ie. An entirely optional session first thing in the morning to come and share the dreams that were had in the night. I\'ve been learning from Apela Colorado about this practice and can only say that although it would take me many years of practice to really say why this is so effective at group meetings, that I have found it to be so. Group systems for mutually holding the unconscious forces of a group might be useful to our tendencies to unwittingly sabotage our best & most concerted efforts. Feel like I\'ve said this in the article I wrote, but I\'d love to facilitate some dream work sessions. & really encourage the existence of group dance, meditation and other activities through the day.
\n\nSurprising ways of getting the web of creativity going is one way of getting through the armour of pessimism. I hear a lot of people these days, burnt by the failures of past ventures, getting bitter and hard and talking about having their fingers in many pies so as to avoid being too troubled if one doesn\'t work out. To me, this sounds like a strange new way of "not caring". We do have to CARE & actively try hard to not make the same mistakes - non-attachment is one thing - but speculative gambling to avoid committing just leads to a whole load of nothing. It\'s such an inhibitor of potential. All our eggs are in one basket ... and the basket is on fire.
\n\nThere are many other effective ways of creating together and keeping the flow.
\n\nA few from my experience -
\n\nSchumacher College https://www.schumachercollege.org.uk/ vitalises their educational experience with student organised group meetings each morning where different people bring short physical practices & games, readings to bring everyone into the new day & it also serves to communicate a clear map for the day - what\'s happening, whose doing the food... It works. And you really notice how sometimes you just wake up negative and need to be heaved back into flow. They also have great healthy hearty habits of building fires, clothes swaps, making puddings, doing ritual, singing together, storytelling, dancing - it has a spiritual cohesion that is rare. On a less good tip - it\'s fucking expensive which leaves most people out of it.
\n\nCOP21 at the ZAD - self organisation that worked well mainly because of the urgency of the climate meeting & a level of care & focus given by the event following so shortly after the bombing in Paris. The thing that made this one work so well was the shared commitment to a greater cause - it gave the space feeling of camaraderie, trust, helpfulness, gifting, community, sharing info.
\n\nThe Chaos Computer Club in 2015 also had a similar community spirit, loads of people interacting with a will to experiment & hack prototypes, set up spontaneous meetings, share experience, exchange networks, DANCE together - on a less good tip - well, there\'s everything about the negatives of technology culture, new elites rising, tech worship that has not yet plugged into wisdom and care...
\n\nThe Warp Experience in the 90s in London - this one really shifted me with its open, mind bending, hilarious & inspiring concoction of theatre, workshops, talks, wild dance, a hot tub. It was a liberty space of organic flow, wild experimentation and spontaneous creativity. Like all expressions of liberty, liberty lasts a short while and then rots unless it is tended to transform into something else - and these negatives became more visible, there was no real help to those who were vulnerable (except the social radar that sometimes worked well), there was mental fall out, sexual predation, guru culture and power conflicts, hedonism culture always means lots of talk and less action and its got a shadow of addiction and escapism, and no one really understood how hard it would be or how long it would take...
\n\nOne conclusion I take from all this is that true creativity is the secret ingredient. The Warp may have been wild & chaotic and bitten the dust but it spawned its seeds, to America and the Cosmic Trigger rising in the UK is all part of its growth through time. Real creative experience has organic effects that continue and seed new life, even if you can\'t account for them in reports - they often have much more power than really thought-through planned experiences... I\'ve certainly been to a lot of conferences and formal meetings which have not shifted me.
\n\nSomething that keeps coming to me about the Open Village is TIME
\n\nThe question of - what lasts? what\'s useful? how can we inhabit this time with power?
\n\n& what\'s possible for October? Which is not so long away...
\n\nI have one thought that keeps rising on taking this notion of the caring healthy self-organised group out into the city. Few respond well to shouty negative activism. Fear is not the great communicator... Part of the cascade project was around slow culture hacks. Activism that emphasises changing the pace of the city and foregrounding presence, vulnerability and the beauty of the earth. The dance groups on the streets for the COP21 shifted me.
\n\nBeen thinking about action on the streets & since culture is obsessed with excitement - anything too high paced is likely just to feed the machine and be yet another ride on the wheel... For where there is hectic business, there is all the distraction, blindness and madness of this suicidal culture. This sense that \u201cthe time is now\u201d can be met by something present. Instead of putting that intense feeling into multiple short-lived projects, to make energy matter. To use energy with real intention. One way of spreading courage and alternatives is to be in total presence. What about an action that expressed a great slowing down into presence during the Open Village? Slowing down the pace of the streets with movement. Done a few things like this before - I led a slow motion walk up Oxford high street in the last decade to protest the Iraq war. So - what about a short workshop and then an action of dancing slowly (in whatever your style) in the streets? Gifting pieces of fruit to passers by? A way of spreading the invitation. I\'ve made mistakes in the past about acting before the time is ripe. Doing too much. In rushed ways. Not preparing long enough to really pull it off. There is a mastery to carpe diem - in plucking the day when it is ripe. If that can tie in with urban game you are working on - great - I\'m on for this & looking out for times and places for this creative plan.
\n\nStripping things back. I think it is all about caring, realism and presence, and for me - whatever the outcome - joy. Events can unleash creative energy + knowledge. So I love events that combine enacting purpose with great up-to-date info exchange, tools and realistic sharing of experience & melding that with infinite welcome, friendship and heartfelt (some might call it spiritual) unity. & if we hit the sweet spot, participating in the network can catalyse personal understanding and meaning in the personal lives of all those that come participate - that\'s a good feedback loop. Meeting together can open up new potentials for people to see how their own creativity can be part of meaningful radical action if it\'s held in a solid creative authentic container. The reason I got drawing chalk doors on the walls of Paris & planting seeds across the city during cascade.network was to invoke this strength. Doors where we see walls. Might be poetic. But the effort\'s so tough, it needs poetry.
\n\n& diversity!
\n\nWhilst I am attempting to school myself in cybernetics to become a real structural thinker, I still think like a creative and have a lot to learn. A variety of very different kinds of people who share values & can play to their strengths and accept the limits of others, might be more powerful than a group of people who are all exactly on the same page. Functional groups needs the grumpy pessimist, the young & enthused, the spontaneous creative, the radical wild card, the focused logician, the butterfly generalist, the pragmatic parent, the radically honest, the contextualisers and historians, the future-thinkers, an elder and groups desperately needs the people who\'ve had it hardest and have learnt lessons most are lucky never to learn. My work - creative, research, teaching - has often kept me in a solitary pattern & I\'m trying to break that pattern in myself as I truly come to understand that we not only need to know ourselves but we also need each other - in all our different forms - to make action together & give that action the best possible support.
\n\nThese years have made me agnostic to style & aesthetics. What moves me is whether someone means it, because then there\'s possibility for learning and acting. Commitment and care is a helluva lot more important than uniting over style or even personality. Commitment and care are solid foundations for the humility and superhuman patience to work with people you may not necessarily vibe with all the time...
\n\nOk - that\'s my attempt to share some experience.
\n\n& wait - my god - if I learnt anything from the Cascade it would be the communication. The project was an attempt to unite behind a purpose, act boldly and tell the story as we did it. But my god, did I discover how terrible at leaving a documented trail I was. Spent a lot of time with sound artist Leah Barcalay who was tweeting for one of the massive eco twitter accounts during that conference. She\'d trained herself to tweet every minute or so. Open Village can make it easy for young people to attend and take up this communicative role - that would be a great idea. The social reach. The story told by many different storytellers. I was really naive about this when Cascading.
\n\n& beautiful documentation carries the spirit on into the future. Unmonastery felt pretty great at this - I was not involved at all in this project - but through the videos & presentations that project moved me. & this one http://www.open-frames.net/changing-tents/
\n\nHere are some events going on in the UK in August with some similar values -
\n\nBalance Unbalance http://balance-unbalance2017.org/ - I\'m going to this, it\'s great
\n\nEarth First! http://earthfirstgathering.org/
\n\nIntergalactic camp 17th-24th August
\n\n\n\n\n& final question
\n\nThe plan to hold "11 days of living differently" in Brighton & the attempt to live on a different economic exchange, inside an open creative lab, sharing tools/ knowledge & a city wide game did not work because we realised that we needed to provide support if it was going to be a real invitation. ie. more than an arty kinda project. If it was going to be an invite that people could answer and participate in without getting burnt out and becoming penniless in the process it needed some self-funding structure that could tend it & support people who were on lower income... Experimenting with Brighton\'s GoodMoney or one of the ethical cryptocurrencies like FairCoin was the idea, but frankly I don\'t know enough about this.
\n\nMy main point here is that it is vital to support people in being able to take up a bold invitation - otherwise it\'s a radical possibility for those with the privilege to meet it, in that people live in a radically unequal context with totally different kinds of resources. If it\'s an open invite for people to make their own way to the "experiment" that risks only receiving folk who can commit to risks like that (eg. folks on PHD scholarships like me.) That\'s not healthy representative variety. & many "utopian" meetings I attended over the decades died because they were basically wedded to capitalism and the inequalities of that system at their foundations. I\u2019m really interested how you guys are going to meet this problem. Nadia mentioned cryptos... & I will catch up with Frank about this next week - about how people can be fairly supported to take up the invitation. In 2017, we all have to take risk. But we also gotta make the effort to try and share the level of risk - something that is a manageable risk to one person, might genuinely destroy another person\'s ability to survive. Looking forward to learning from you all on this.
\n\n*If I copy edit your copy, can someone consider writing bullet point summaries of mine ; )
\n\nShort form writing is not my strength...
', u'post_id': 33306, u'date': u'2017-07-30 18:15:19'}, {u'user_id': 3, u'title': u'More about the Cascade project', u'comment_id': 33330, u'content': u'Hei @kate_g you surely have a way with words - maybe you are up for helping proofread or contribute to the mission statement/ invitation we will launch when releasing the first version of a program?
\n\nI\'ve browsed through the Cascade website and it\'s not clear how your calls for participation were met by the community.\xa0I understand for about 6 months you ran events to re-activate Brighton in creative ways (#CascadePortal), then in spring/summer 2016 you attempted the 11 day action residency for which you didnt get funding and it completely stopped? None of the 3 components of the residency happened? (city game, AV nights and workshops)
\n\nCommunity building and nurturing is very hard work even when theres a collective conscience and willingness to go forward together.\xa0\xa0I think you and Nadia hit a\xa0chord when you mentioned leadership and excitement, so needed in ambitious projects!
\n\nPaging @Matteo_Uguzzoni to ask him whether\xa0their team in Milan\xa0ever designed an urban game\xa0which involved building ecosystem of sorts? Matteo, we are considering bringing an experiential activity at the Open Festival - do you think your work could fit?
', u'post_id': 33306, u'date': u'2017-07-20 15:35:24'}, {u'user_id': 3622, u'title': u'Some (admittedly fragmented) notes from the call yesterday:\n\nAttending:\n\n@alberto, ', u'comment_id': 33657, u'content': u'Some (admittedly fragmented) notes from the call yesterday:
\n\nAttending:
\n\n@alberto, @noemi, @amelia, @brunoconte, @woodbinehealth, @gehan, @melancon, @hazem, @jason_vallet, @natalia_skoczylas
\n\nDiscussion on how you might use this tool if you were trying to figure out what to use this data for.
\n\nAmelia: As a policy maker this is something we have been talking about quite bit.
\n\nAlberto: Example connecting legality, existing system failure, and safety and regulation. We make a hypothesis on the basis of the graph, confirmed by reading the conversation. Many people blocked by regulation trying to do something beneficial, but there is also a recognition of the issue of safety - this contradiction plays out in sophisticated ways in the OpenCare community. The way you dig deeper into this is by reading the text, but at a higher level you can already read it in the graph.
\n\nAmelia: You couldn\u2019t read all the stories, there are too many. Graphryder enables you to pick out the stories, and dig deeper.
\n\nStart with the tag view. For example: I\u2019m interested in \'policy\'.
\n\nOne of the things I\u2019m noticing is there is an interesting link between policy and existing system failure:
\n\n\n\nIf I were a mental health professional, I could look at all the related topics. For example: mental health and creativity - what\u2019s going on between the two, that might not be clear? I might not know the link between the two, but Graphryder provides a link between the two that exists. People feel they have more mental health concerns when they are in creative professions.
\n\nNow we get an overview of content that relates to both of these issues.
\n\n\n\n3000+ contributions in all on Edgeryders, very hard to filter through - Graphryder gives us an ethnological perspective: I would miss some of these connections if I didn\u2019t get this zoomed out view - instead of relying on individual memory, I can see how strong the link between these different concepts are, that I may not have known about.
\n\nLooking at the graph - there\u2019s a crucial link with safety and system failure - even though legal frameworks get in the way of DIY initiatives, there are existing regulatory frameworks to work within, which from an anthropological point of view is interesting.
\n\nThe tag view is really useful for seeing relations between nodes. By digging into care we can find a different angle of discussion on health, the design interventions node points us to smartphone based healthcare apps:
\n\n\n\nThere are three different views: one for users, one for content, one for tags.
\n\nThe Detangler view lets you see the intensity of the conversation around subjects.
\n\n\n\nAlberto: Benefit to local network analysis in ethnography - my instinct is to try and get information on the network as a whole - that\u2019s what humans can\u2019t do. Anyone can keep track of a local track of ten nodes or so - what is unique is the global connectivity pattern - a pretty close call for collective intelligence. My problem with the detangler view: hints at regularities, but stops ahead of the finishing line, which would be to say, these connections between nodes correspond to a social network, then you compute the social network metrics which has something to say about the connectivity. Ex: validation to interaction, if the social network is connected, we can hope, people have been debunking the connections between the two nodes, therefore we know the network is solid. You use it to calculate a reliability score of the reliability between the nodes on the social network.
\n\nAmelia: There are different kinds of interactions that are valuable. A few people discussing a topic might be more valuable, if they have a deep and intense knowledge of the topic, we wouldn\u2019t want to discard them just because they are a small group talking about insulin and open research. Allowing for a way to display that importance is pretty important to me from an ethnographic perspective.
\n\nFor example: mental health and creativity are closely looped - it seems a lot of people are talking about it. Is it an intensive or distributed conversation?
\n\n\n\nFrom an approximation: it\'s a very diversified social network, looks like the link between mental health and creativity has been discussed and debunked quite a bit. Whatever the results: you can fall back on what people are actually talking about.
', u'post_id': 33305, u'date': u'2017-07-27 18:06:45'}, {u'user_id': 1935, u'title': u' count me in, wil be there. see ', u'comment_id': 33603, u'content': u' count me in, wil be there.
see you in a bit.
Will keep an eye on the number of attendees so that we are prepared to setup a 2nd hangout room if needed\xa0
Hi StreetNurses,
\n\nA Skype conversation would be great. My email is bernardmcglinchey@gmail.com
', u'post_id': 767, u'date': u'2017-07-25 12:51:49'}, {u'user_id': 3440, u'title': u'Hello Bernard, \n\nCan I have your e-mail ?\n\nWe ', u'comment_id': 33555, u'content': u'Hello Bernard,
\n\nCan I have your e-mail ?
\n\nWe want to organize a skype.
\n\nBest
\n\nStreetnurses.
', u'post_id': 767, u'date': u'2017-07-25 10:48:34'}, {u'user_id': 3686, u'title': u'similarities ', u'comment_id': 19697, u'content': u'the medical issues \xa0seem to be the same as the golden foot collective.
\n\nworking in the migrant crisis. any thoughts on how to deal with scabbies in precious situations?\xa0
\n\nbe well\xa0
\n\nMd
', u'post_id': 767, u'date': u'2017-07-05 11:15:17'}, {u'user_id': 3440, u'title': u'Reply', u'comment_id': 17902, u'content': u'Hi Bernard,
\n\nThanks for your interest for our work and model.
\n\nOf course there\'s certainly room for export of some tools, trainings or even more... But we would like to discuss it more thorougly\xa0 with you on skype, to see what could be the plan and what are exactly your needs.
\n\nWe are very busy at the moment, preparing our "registry week" end of this month, so we will contact you in the beginning of July to make an appointment with you on skype.
\n\nBest,
\n\nPierre Ryckmans
\n\npierre.ryckmans@idr-sv.org
', u'post_id': 767, u'date': u'2017-06-14 15:33:53'}, {u'user_id': 3433, u'title': u'Hoping to tackle homelessness in Ireland', u'comment_id': 15524, u'content': u'Hi @streetnurses,
\n\nAre your tools and publications available to people in other countries interested in following your model? I\'m a nurse in Ireland involved with various community projects, and believe the street nurses model would be a great fit for here.
\n\nAlso, how do you maintain patient privacy while treating people on the street? Part of my work is looking at care on the move and related design solutions.
', u'post_id': 767, u'date': u'2017-06-12 11:03:44'}, {u'user_id': 3, u'title': u'Nope, sorry!', u'comment_id': 12232, u'content': u'Working in the\xa0area of homelessness I\'m only aware of\xa0DOUCHEFlux as a partner in the proposal.. but I may be wrong.
\n\nMaybe @Yannick can clarify?
', u'post_id': 767, u'date': u'2016-10-05 14:26:00'}, {u'user_id': 3440, u'title': u"Hello Naomi, I don't understand. We have worked ", u'comment_id': 10674, u'content': u"Hello Naomi, I don't understand. We have worked with Yannick for the OpenandChange. Have you not seen our applicant ?\xa0
", u'post_id': 767, u'date': u'2016-10-04 13:46:26'}, {u'user_id': 3, u'title': u'Oops, a day late for OpenandChange!', u'comment_id': 10392, u'content': u'Hello @Streetnurses,\xa0welcome to Edgeryders and OpenandChange, we have already submitted the application (unless you joined with a different project and I am not recognising you),\xa0but if things go well in this first phase and we get to be semi-finalists we will of course get in touch. In it we are saying that over the next two years 150 projects will be running activities to become more solid, sustainable and even generate some source of income.\xa0
\n\n\u201c..because of our high costs of wages it is difficult to fund foundations that are willing to support us\u201d What do you mean by that? For example the MacArthur funding would allow personnel costs, and most large grants that I know of.
\n\nOh, I almost forgot. My name is Noemi, community manager, and my own answer to the challenge \u201cHow do you give and receive care?\u201d is here, I wrote it a few months ago should you be interested to exchange notes. Let\u2019s stay in touch.
', u'post_id': 767, u'date': u'2016-10-03 12:23:14'}, {u'user_id': 3, u'title': u"Yeah, I'm not sure what the agreement is ", u'comment_id': 33550, u'content': u'Yeah, I\'m not sure what the agreement is with the original designer, so if you click and just ask for permission to view it would be great, thanks! Also @jonathan_sundqvist are you interested in helping with a funnel event site? Any ideas welcome.
\n\nI may have found someone to code it, she\'s sending a mockup later this week..
Thanks!
I noticed that the link for the "visual design" is unaccessible because it hasn\'t been made accessible yet. It\'d be great if everyone could view it
Wordpress theme templates available here:
\n\n\n
\n\n\n\n\nDropping this here for lack of. We need a\xa0blog post (or series) articulating the invitation around precision of activities, which Kate mentioned yesterday - her example:\xa0http://cascade.network/five/
', u'post_id': 6301, u'date': u'2017-07-20 15:23:23'}, {u'user_id': 3, u'title': u'Compiling ideas from community calls', u'comment_id': 33448, u'content': u'To help us draft Program v1.0:
\n\nThere were a bunch of concepts mentioned with relation to Harvesting, maybe @Gehan can aggregate the more important ones so we can agree on a format forward.
', u'post_id': 6301, u'date': u'2017-07-20 10:46:24'}, {u'user_id': 5, u'title': u'Comments on the format', u'comment_id': 33389, u'content': u'Ok @Noemi , some notes from the Matera curator experience (as far as I remember, it\'s quite some time since \u2026).
\n\nWe made sure at least one of us two curators (Amelia and me) would join each session in our theme. Sometimes it was not possible for both of us to attend \u2026 I don\'t remember why, probably because of having to lead another session on our own in parallel.
\n\nThe "de-briefings" were an, umh, interesting experience You\'d have to ask audience members if they found this helpful. From my perspective, it was a bit like giving a stand-up-speech. Like, "Please talk 5 minutes about roses.". It would require to create some ideas and insights on the fly that at least sounded somehow interesting or relevant. Bit like brainstorming on stage I still remember an idea I had in this situation, which felt novel to me: "Open source is about re-inventing and re-creating everything that so far only exists in IP protected, closed versions. It\'s somehow a waste of time enforced by the laws we have, but so be it."
As for changes, I\'d propose to somehow give curator teams quite some time (30 min) to discuss their insights together before telling the audience. Because every speech / public address becomes clearer and better if the speaker tried to verbalize the ideas before at least once.
', u'post_id': 6301, u'date': u'2017-07-21 12:14:43'}, {u'user_id': 3613, u'title': u'world game?', u'comment_id': 24109, u'content': u'http://www.internationalfuturesforum.com/world-game-workshop
\n\nWe participated in\xa0this game once and I wonder if it might work well at some point\xa0over the three days?\xa0
\n\nThere are three \'acts\'; World of Concerns, Possible Futures, Wisdom Council. It might be a good departure from other formats and we found it generated insights that may not have been possible otherwise.
\n\nInternational Futures Forum\xa0are engaged in other areas of work,\xa0including in health (they work closely with Glasgow Centre for Population Health). Their Three Horizons model I\'ve found particularly helpful. Where are we choosing to put our energy - in sustaining horizon 1 or creating horizon 3. Opencare seems to be about building horizon 3.\xa0I\'m arranging to meet up with them soon to explore relevant connections and whether these might lead to another session.
', u'post_id': 6301, u'date': u'2017-06-24 10:21:04'}, {u'user_id': 3, u'title': u'Mental note: make room in the program for..', u'comment_id': 20594, u'content': u'.. intimate plenaries: de-briefings and sharing sessions in the evenings, across the different themes. List of questions here.\xa0This works nicely when the floor is opened by someone summing up the day from an angle i.e. could be\xa0curators who attended most sessions in a theme. We tried it in Matera at one of our events and it worked really well. @Matthias can advise what to keep/change in the format,\xa0since he was one of the curators.
', u'post_id': 6301, u'date': u'2017-06-23 16:39:00'}, {u'user_id': 3, u'title': u'Ping Zoe', u'comment_id': 17646, u'content': u'Ok..
\n\nOne of the sessions to have which we didnt talk about yet is one about Makerspaces and the infrastructure they provide to enhance community care. WeMake experience in Milano is highly relevant - so inviting @zoescope for a chat would be great!
', u'post_id': 6301, u'date': u'2017-06-12 19:48:43'}, {u'user_id': 3362, u'title': u'Sure', u'comment_id': 15688, u'content': u'I get access denied for those pages though.
\n\nOn my end, I have just had a Skype call with Anthony from Open Insulin and his session will be up soon. We can go ahead with programming that. There are two more proposals on their way by EchOpen and DIY Science Network. Those should be good to program soon after, the calls I had with them were promising.
\n\nI can check with them if they can get it up before Wednesday, or if we can go ahead with programming the sessions.
', u'post_id': 6301, u'date': u'2017-06-12 18:35:58'}, {u'user_id': 3613, u'title': u'Tomorrow ', u'comment_id': 11565, u'content': u"Thanks,\xa0I'll give this more thought tomorrow & do a few edits.\xa0I'll follow up\xa0contacts\xa0with people or orgs who can make contributions on this theme.\xa0
", u'post_id': 6301, u'date': u'2017-06-12 22:33:53'}, {u'user_id': 3, u'title': u'Need a quick reply from curators..', u'comment_id': 8895, u'content': u'Hey @Gehan and @WinniePoncelet ,
\n\nSo our festival\xa0program page\xa0in the menu looks pretty empty now.. it\'s simple but misses\xa0the connection between themes and actual sessions. The themes listed there are generic ones we used prior to working with you. We need to link to synthetic theme pages, in addition to circulating your\xa0briefs and calls for participation. So:
\n\nCan we show people we invite what is already part of which theme? The hope is that will make it easier for others to build on the theme.
\n\nLet me know what you think of the below?
\n\nFor Citizen Science: https://edgeryders.eu/en/openvillage/open-science-and-citizen-science-for-more-inclusive
\n\nFor Architectures of Love: https://edgeryders.eu/en/openvillage/architectures-of-love-creating-the-conditions-for-open
\n\nAs content managers, you should be able to see them even as unpublished pages as they are now. There is also an Edit tab on the top where you can edit the pages yourselves. We can work together to\xa0finalize them on Wednesday early morning - even if you dont have final information... Ping me for quick chats?
', u'post_id': 6301, u'date': u'2017-06-12 17:40:12'}, {u'user_id': 3367, u'title': u'Social and health', u'comment_id': 33382, u'content': u'@Duey thanks for this post, just getting a chance to read your post. \xa0Love the energy and the holistic aspect of your work. \xa0I\'m working with the Woodbine Health Autonomy group and also helping to curate the OpenCare festival. \xa0We have been thinking of ways we can implement beauty and fun into our ideals of care. \xa0I\'d love to chat with you about different ways we might be able to collaborate. \xa0Maybe more blog posts of possibly setting something up at the festival to highlight your ideas about social interactions! \xa0We can chat via email and possibly set up a time to chat. \xa0Email us at woodbinehealth@gmail.com. \xa0Cheers and keep up the great work!\xa0\xa0
', u'post_id': 808, u'date': u'2017-07-20 16:36:28'}, {u'user_id': 3535, u'title': u'Hi,\n\nNice to meet you. Thank you for your ', u'comment_id': 17562, u'content': u'Hi,
\n\nNice to meet you. Thank you for your comment. Well for the alcohol-free space, I would need:\xa0
\n\n1) One or two dedicated and trustworthy people who are as passionate as me about the idea, in Galway who could commit part time hours to work in it, and possibly be coloborators or managers with me, because I am not sure I want to be alone in the decision making and managing at this time.
\n\n2) Funding and resources: I would need start up funding for the first couple of years to get the project to a self-financing stage, and a trusted accountant and solisitor to take care of such things.\xa0
\n\n3) A suitable venue/building in the city centre. It would be ideal to own a building, or be donated one, but I would settle for renting, it is more important that the space exists.
\n\n4) I would need to be able to give my full time and energy commitment to the project for a couple of years. (this is where a partner would be handy)\xa0
\n\nIn the mean time what I could be doing is running regular monthly/twice monthly events in rented spaces, to build up a customer following and awareness of the project. This would require a smaller investment of money, resources and time.\xa0
\n\nI currenlty do not have any money to invest in either of these options.\xa0
\n\nI would need to make money from it to make it sustainable and be able to dedicate enough time to make it the best it can be.\xa0
\n\nThanks for asking, it has helped me think about where I am and where I\'m going \xa0
Hello @Duey ! I am Alberto, I was browsing all these care stories on Edgeryders and found your post just today. Congratulations, you seem like an ace community convener. This is an ability that commands a lot of respect here in Edgeryders.\xa0
\n\nI have a question. What would you need to move forward with your alcohol-free space? I am interested in people\'s dreams, and how they can be made to come true.\xa0
', u'post_id': 808, u'date': u'2017-03-14 15:20:01'}, {u'user_id': 3535, u'title': u'Greetings!', u'comment_id': 11035, u'content': u'Hi, Thanks for your welcome. Lovely to meet you too, and lovely to be here! I\'m sure i\'ll have a good look around and get to know the place and people soon. Excited to see what it\'s all about.
\n\nI loved meeting Nadia in Ireland at pre-un-mon, the event went great, lots of good conversations, company, food, and work done out in the fresh (cold) air! scheming and hatching plans was great too, and the yoga and archery of course (Thanks Bernard!). I am looking forward to see what comes out of it, the connections I made and deepened there over the 4 days was invaluable. Having that time away from the city to focus on things, the whole concept is great!
\n\nSo\xa0I\'m not sure what my exact path is yet, there are so many ideas, possibilities and opertunities. But i\'m sure being here surrounded by inspiring people will help me.
\n\nI\'ll be sure to ask questions thank you \xa0
Toodles \xa0
Very nice to meet you, @Duey! You seem to be quite a connector and community leader, so you\'ll probably feel at home in edgeryders. We have a lot of online conversations because we\'re spread all over, and\xa0personally I have found it complements nicely real life relationships\xa0- it takes time to get used to sharing many things via a web platform, but then it really gets under your skin.
\n\nI\'m Noemi, longtime edgeryders member, so if you\'re curious about past unMonastery work which inspired to some extent AAE\xa0feel free to ask.. There is a discussion group where the prototype work was coordinated and reported on - it\'s /t/unmonastery/315. Do you have plans of joining the Galway/Cregg\xa0iteration?
', u'post_id': 808, u'date': u'2017-01-13 08:48:56'}, {u'user_id': 3362, u'title': u'Notes: basic plasmid mechanics', u'comment_id': 33331, u'content': u'@flinty and I went over the vector, how it works and the implications for the protocols. I wanted to share this for those who are fully clear on the mechanics yet. Below is a simple schematic and here\'s a more detailed vector map.
\n\nBasically it comes down to this: for expressing proinsulin, the bacteria needs T7 polymerase (which is a molecule needed for turning DNA into a protein) and a spot to bind to the plasmid DNA. The bacteria has to produce T7 polymerase itself (that\'s why we need a specific type of bacteria, such as BL21 or TG1, that does this). We control production\xa0through making the binding spot available or not.
\n\nThe T7 polymerase can only bind to the T7 promotor, which leads to production of proinsulin, when the binding spot\xa0is not repressed. Adding IPTG, which works on the\xa0"lac" part on the plasmid, makes sure the T7 promotor is not repressed. IPTG is our induction agent in this case: when we add it, proinsulin production starts.
\n\nThe "his tag" is for purification of the protein after it was expressed.\xa0The amp gene is for\xa0ampiciline resistance so that when we add ampiciline\xa0(an antibiotic) to the growth medium, we are sure the surviving bacteria have our plasmid\xa0(those bacteria that don\'t have the plasmid are not resistant).
\n\n\n\nFinally, we went over the required materials one last time and we\'re good to go for starting experiments in August when we have access to the lab!
', u'post_id': 33303, u'date': u'2017-07-20 16:10:00'}, {u'user_id': 3367, u'title': u'Conscious and creation', u'comment_id': 33353, u'content': u'@ewoudvenema Thanks for the video and post. \xa0I\'m curious to learn more about your connections between creation and resilience? \xa0How do you view them being connected? \xa0How do you see creation as a process of mental health practice? \xa0What do you think the next steps will be for your course? \xa0Thanks alot and looking forward to hearing from you. \xa0
', u'post_id': 876, u'date': u'2017-07-19 14:53:32'}, {u'user_id': 3, u'title': u'"Is it for me?"', u'comment_id': 6779, u'content': u"Me, I've never tried anything like it.
\n\nIt might help if you have a call for people who havent experienced, in practice, to be conscious in the same way you probably have, since\xa0you use the term.
\n\nDid you have an idea which progressed somewhere thanks to you being so aware? Somewhere that others can associate with positive effects?
", u'post_id': 876, u'date': u'2017-07-05 14:52:23'}, {u'user_id': 3367, u'title': u'Changing model of life with disease to disease with life', u'comment_id': 33352, u'content': u'@Federico_Monaco Thanks so much for all your work. \xa0I\'m really interested in the data collection and practices you all are doing in regards to how we understand disease. \xa0I work as a doctor in the ER, and can tell you from training that we percieve health as the absence of disease. \xa0But one thing we have been trying to develop at Woodbine is very similar to the work you are doing. \xa0Changing the model of health to think of disease as a part of us, be it our high blood pressure, our cancer, or our depression. \xa0And that while treatments can be helpful, we are not striving for a world in which all "disease" is removed from us. \xa0In fact, every day our bodies are closer to dying, so we cna never be free from disease. \xa0Especially in relation to how we treat the elderly, in the US, they are socially shunned. \xa0So how can we reshape the way we understand disease, understand care, and create a world where we are all "living" a beautiful death. \xa0I would love to chat more, maybe set up a time for a call to discuss possibilities of creating more collaborative work! \xa0
', u'post_id': 881, u'date': u'2017-07-19 14:46:14'}, {u'user_id': 3310, u'title': u'LINKS FOR WORKSHOPS ACTIVITIES', u'comment_id': 33318, u'content': u'Dear participants,
\n\nwelcome to the hands-on segment of the workshop.
\n\n\n\nPlease, choose and access a category (notes, pictures and sounds) of the field material collected as open resources:\xa0
\n\n\n\nDiscuss possibily in group and publish in this thread your comment about one of the three collections.
\n\n', u'post_id': 881, u'date': u'2017-07-13 12:21:31'}, {u'user_id': 3613, u'title': u'Yep', u'comment_id': 33350, u'content': u'up for giving that a go... what are we looking to achieve?\xa0
', u'post_id': 33298, u'date': u'2017-07-18 20:05:27'}, {u'user_id': 3, u'title': u'What do you think of the weekly post?', u'comment_id': 33324, u'content': u'Does this work as a routine?
\n\nFrom existing participants: I\'d like to know more about Michael Dunn, Lucy, GenghisAloe,\xa0Matteo\xa0, Vincent_Mortier\xa0, even\xa0Owen\xa0! These are just examples..\xa0
\n\nFrom new participants: you know best
3D printed conductive PLA!\xa0https://www.youtube.com/watch?v=Mpo1P5eEUU8
', u'post_id': 6291, u'date': u'2017-07-17 19:37:52'}, {u'user_id': 3362, u'title': u'Short updates', u'comment_id': 31639, u'content': u'Some updates:
\n\nI came across this today, may be\xa0useful for further research on the possibilities: Metafluidics, an open repository for fluidic\xa0systems.
', u'post_id': 6291, u'date': u'2017-06-08 08:57:50'}, {u'user_id': 3362, u'title': u'Good stuff! Some thoughts', u'comment_id': 31051, u'content': u'Good stuff @BramDeJaegher !
\n\nESP 01 and ESP 201 are modules with Wi-Fi connectivity. So my thinking is those folders are two versions of the device with different modules. Can this be?
\n\nI\'ve had a search for those carriers and they are\xa0shown in these videos:\xa0part one\xa0and part two. Shortcut to 6:20 of part two to see both being combined.
\n\nWhen I was in touch with the fablab @ UGent and also Fyxxilab, they told me they have a machine we can use to etch the PCB. Would this affect the price?
\n\nHave fun in The Hague!
', u'post_id': 6291, u'date': u'2017-05-25 21:02:00'}, {u'user_id': 3645, u'title': u'Undisclosed content ', u'comment_id': 31041, u'content': u'Undisclosed content', u'post_id': 6291, u'date': u'2017-05-25 19:24:12'}, {u'user_id': 3362, u'title': u'Things to get', u'comment_id': 31016, u'content': u"So we need to make a circuit board, get electronic components\xa0& laser the carrier?
\n\nI can\xa0do the lasering at Timelab next week, I'm a member there so it's cheaper than other places.
", u'post_id': 6291, u'date': u'2017-05-24 13:47:51'}, {u'user_id': 3645, u'title': u'Undisclosed content ', u'comment_id': 30957, u'content': u'Undisclosed content', u'post_id': 6291, u'date': u'2017-05-24 10:09:31'}, {u'user_id': 3642, u'title': u'Undisclosed content ', u'comment_id': 30792, u'content': u'Undisclosed content', u'post_id': 6291, u'date': u'2017-05-24 09:55:14'}, {u'user_id': 3362, u'title': u'Techniques', u'comment_id': 30405, u'content': u'Happy to hear Wim is coming!
\n\nApart from getting the device together, we can start thinking about what to do at the biohackathon in July. Federico shared some interesting techniques like Loop Mediated Isothermal Amplification\xa0(LAMP) and Recombinase Polymerase Amplification (RPA) that are convenient to use in microfluidics, as they are isothermal reactions. We already discussed culturing bacteria on the chip.\xa0We could\xa0add a detection step or\xa0try to do a transformation, or do\xa0cloning.
', u'post_id': 6291, u'date': u'2017-05-25 11:46:49'}, {u'user_id': 3641, u'title': u'OK, I will join as well the 7th ', u'comment_id': 30200, u'content': u'OK, I will join as well the 7th and will also go through the documentation of\xa0OpenDrop.
\n\nWim Van Criekinge is planning to also join. He made quite some promotion for the open insulin project in his lecture today.
\n\nM
', u'post_id': 6291, u'date': u'2017-05-23 20:53:57'}, {u'user_id': 3645, u'title': u'Undisclosed content ', u'comment_id': 29673, u'content': u'Undisclosed content', u'post_id': 6291, u'date': u'2017-05-23 12:26:15'}, {u'user_id': 3362, u'title': u"Let's make some plans", u'comment_id': 29392, u'content': u'Hello and welcome @Rpelicae ! Also welcome to @atilla | @BramDeJaegher &\xa0ping @ritavht and @Michielstock
\n\nI\'m ill, hence the radio silence. Some updates: I was in touch with the creator of the OpenDrop and documentation is limited to what we have on the GitHub. We could buy a finished one for \u20ac500 though. Else, we are welcome to build at the Fablab of the UGent on weekdays from 9:00-16:00 (except Tuesdays). From looking over the documentation and talking to people I realise we really need some electronics expertise to get going.
\n\nFor meeting up I propose we join the Open Insulin meetings we have every two weeks. The next one is planned for June 7 at 8 pm at ReaGent.
\n\nSome things that need to be done:
\n\nIs anyone up for doing one of these tasks?
', u'post_id': 6291, u'date': u'2017-05-23 11:32:00'}, {u'user_id': 3642, u'title': u'Undisclosed content ', u'comment_id': 28264, u'content': u'Undisclosed content', u'post_id': 6291, u'date': u'2017-05-15 07:56:30'}, {u'user_id': 3362, u'title': u'Where to begin?', u'comment_id': 26673, u'content': u'The repository link for OpenDrop is here\xa0and the website is here. I\'m kind of new still, been learning about the tech behind it, so I can\'t seem to wrap my head around where to begin from the Github files. Can anyone pitch in on the materials we need etc.?
\n\nAlso a warm welcome to @Rpelicae and @Michielstock ! There\'s a manual on how to use the platform here, if you should need it.
', u'post_id': 6291, u'date': u'2017-05-14 12:28:00'}, {u'user_id': 3580, u'title': u'preps/experiments/biohackathon?', u'comment_id': 24140, u'content': u'Count me in!
', u'post_id': 6291, u'date': u'2017-05-12 13:38:15'}, {u'user_id': 3362, u'title': u'Building an OpenDrop', u'comment_id': 20733, u'content': u'Today I met with Michiel, Bram & two students of UGent who were interested in teaming up to develop this further. We think the first step is to build an existing device ourselves to familiarize with it:\xa0the OpenDrop of GaudiLabs (http://www.gaudi.ch/OpenDrop/). Asking around for a fablab to host us and then find a date in the coming weeks.
\n\nNext up is trying to culture some E.coli on it and prepare for the Biohackathon in Waag (Amsterdam) on 7-8-9 July.
\n\nWho else wants to join in for preps/experiments/biohackathon?
\n\nping @ritavht\xa0
', u'post_id': 6291, u'date': u'2017-05-12 12:07:00'}, {u'user_id': 4, u'title': u'Mindblowing, though...', u'comment_id': 16210, u'content': u'... with @WinniePoncelet we had a conversation about this. I absolutely love this stuff, and yes, it will make tests much simpler and faster. But I doubt you will be able to bruteforce combinatorics problems, at least in the foreseeable future. The numbers explode too quickly.\xa0
\n\nThat does not mean Open Insulin should not deploy digi.bio stuff. After all, it as much for the learning journey as it is for producing insulin. But you guys will still need to apply domain expertise to figure out which sequences are most promising, before testing.\xa0
', u'post_id': 6291, u'date': u'2017-05-03 20:01:52'}, {u'user_id': 3362, u'title': u'In other news', u'comment_id': 9636, u'content': u'@ritavht is collecting the consumables we will need for receiving the samples and starting our culture, based on an older version of the CCL protocol from December. We will proceed with this as a starting point until we get the latest protocols, as differences are expected to be minor.
', u'post_id': 6291, u'date': u'2017-05-03 18:58:29'}, {u'user_id': 3362, u'title': u'Would love to hear more', u'comment_id': 33379, u'content': u'I had missed this post and\xa0hope you ended up having having a conversation somewhere.
\n\nI also hope you\'ll continue the conversation at OpenVillage with @breathinggames . A session on regulation & legal issues has been in demand, as\xa0@Olivier also mentioned before in his post and the session proposal\xa0where @markomanka goes into ethics and data protection.
', u'post_id': 879, u'date': u'2017-07-18 11:07:10'}, {u'user_id': 3331, u'title': u'About certification and clinical, studies', u'comment_id': 33347, u'content': u'Very relevant\xa0topics , I\'d like to join @fabioballi\xa0,\xa0
\n\n@Olivier\xa0\xa0?
\n\nSome start is here\xa0https://edgeryders.eu/en/opencare-research/opencare-legal-evasion-guide-mortal-issues-for
', u'post_id': 879, u'date': u'2017-07-17 16:56:37'}, {u'user_id': 3349, u'title': u'Thanks @Costantino,\xa0\n\nWe are now in contact and we ', u'comment_id': 7192, u'content': u'Thanks @Costantino,\xa0
\n\nWe are now in contact and we planned on discussing in the following days.
\n\nCheers,\xa0
\n\nOlivier\xa0
', u'post_id': 879, u'date': u'2017-07-07 12:37:41'}, {u'user_id': 2915, u'title': u'Am I the problem or are you the problem?', u'comment_id': 33475, u'content': u'Or rather is it that no problem between people is 100% just one person. \xa0Except sometimes it is. \xa0That\'s why this stuff is hard work. \xa0In another discussion with a bunch of my old Farm friends we were talking about the things we value from our experiences together and many said something along the lines of "living simply." \xa0On the land, not much money, making as much of stuff as you can. \xa0Simple living. \xa0But socially it wasn\'t simple at all!
', u'post_id': 830, u'date': u'2017-07-10 23:54:48'}, {u'user_id': 200, u'title': u'Dissonance in communication', u'comment_id': 33474, u'content': u'Thanks for the request for an example, @Noemi
\n\nThinking about it helps me recognise how hard it is to describe such dissonances well. When I start to think about the dissonances between my own thinking / feeling / being and that of others around me, I feel quickly drawn in to defensive justification of my own position, which makes describing the other points of view more difficult to do in any kind of fair way. I try to maintain my own inner harmony by muting the dissonant voices; by invalidating them in my own mind. Alternatively, and sadly, we simply stop resonating with our own truth, and let it be silenced \u2014 drowned out \u2014 by the prevailing hymns. To hold dissonance in one\'s mind is hard.
\n\nI will try to reflect on why it is so hard, and to dredge up some examples.
', u'post_id': 830, u'date': u'2017-07-17 10:12:57'}, {u'user_id': 3, u'title': u'Network based organisations - where I find it hard', u'comment_id': 29549, u'content': u'You ask about the social and cultural barriers to these useful exchanges.. I see the noise brought about by the digitalization as a source of considerable stress, and working in/with groups whose added value is precisely generating\xa0knowledge out of that and release it back into.
\n\nFor Yannick, the problem is the lack of real collaboration. In the social entrepreneurial scene in particular, he sees more competition than collaboration - he says the collaboration culture means seeing information as a ship which needs to arrive in the harbour (\u2018Culture de la collaboration\u2019 est de voir l\u2019information comme un bateau qui doit arriver \xe0 bon port).
\n\nI cant speak of living together, but I can speak of working together. Maybe some things fit, I dont know.
\n\nFor me, our ability to navigate the network and filter knowledge in and out has to do with how agile our\xa0organisations are - on one hand, we prize flexibility and autonomy, and the ability to shift roles and dynamics (a telling example:\xa0@johncoate spoke about the merits of interchanging roles - from being managed to being a\xa0manager in different projects with the same people). I see people prizing generalists more than specialists.\xa0But on the other side, I find it problematic that there\'s a shortage of specialists or people hanging in to perform deeper\xa0execution tasks.
\n\nWe are all leading something or working for something bigger, but we need to find the time to be just cogs in a machine, which i think we are anyway.. and that for me\xa0is of essence.
\n\nOtherwise the risk not systematically capture\xa0the "wisdom of experience" because it becomes diluted in the many experiements and people we work with, who come in and out of contact with us.
\n\nTo your comment above @asimong, what is a good example of dissonance in communication?\xa0
\n\nI have many in our working relationships, but it has to do - at least in my mind - with exceptional professionalism. Which means there are always ways to improve oneself, which makes one forgiving of the situation. Not sure if the diplomatic, soft way is the best to go when damage is produced.\xa0
', u'post_id': 830, u'date': u'2017-07-10 15:40:43'}, {u'user_id': 200, u'title': u'How to release our collective latent wisdom?', u'comment_id': 29085, u'content': u'This question came back to me today in the context of recognising that many of us (everywhere) have well-being challenges, for example in our personal relationships. Particularly in a community like ours, there is also a great wealth of experience, much of which has already been distilled into wisdom. If we were able to access this wisdom, many would be helped along our ways.
\n\nIt\'s a two-way process, of course. On some occasions we could greatly benefit from the experience and wisdom of others, and on other occasions they might benefit from ours.
\n\nAnd it\'s more than two-way. One person\'s wisdom is often shallow, constrained by the very life experience from which the wisdom comes. If we are lucky -- for instance if that other person is a skilled therapist -- they may be very helpful. But in a peer-to-peer world, it seems better to rely on plurality. The more people whose wisdom we have access to, the more likely it is that one of them will be able to "speak to our condition".
\n\nSo what\'s the essence of the issue here? To me, there seem to be social and cultural barriers preventing the full realisation of this passing on of the wisdom of experience. But also there are time constraints. Maybe one challenge could be to find ways of finding people who have more to offer us; or conversely, finding people who we are more likely to be able to help effectively.
\n\nIt\'s a puzzle, and I would be delighted to read the reflections of others about this puzzle, or even suggestions from your experience, or collective wisdom, on how to address the issues.
', u'post_id': 830, u'date': u'2017-07-07 14:45:44'}, {u'user_id': 200, u'title': u'Laloux, NVC and organisations', u'comment_id': 28470, u'content': u'Hi @Gehan, thanks for mentioning Laloux. Yes, many people into NVC seem also to value his perspective, particularly those who are interested in bringing NVC-type techniques into the workplace. My partner is looking at this area, and is also impressed by Miki Kashtan -- not read by me yet though! She is pursuing certified NVC practitioner status, and is now well connected with the NVC scene in the UK. She is one of the ones who did the RC training and helps host Circles here.
\n\nYour work with organisations looks really interesting, and I\'d like to learn more. Yes, there is plenty of overlap with the collective or organisational mental health of any group of people in regular interaction. The quality of that interaction is highly significant. And there are skills there to be learned and practiced -- that\'s part of my understanding of the basic approach of NVC.
\n\nMaybe there are several potential sources of cognitive (or affective?) dissonance, in 1-1 relationships as well as in groups, and again it could be seen as a branch of communication skills to address that dissonance and foster harmony (one of my favourite words ). What I don\'t know enough about is how to help people (including myself) see the distorted views of themselves which contribute to dissonances in others as well as themselves. 1-1 interactions can so easily stall. Anyway I see these issues as highly relevant to the range of wellbeing and care issues that we are all investigating and may be living through as well.
Hi @asimong, I\'m just catching up on this thread. Many relevant themes. We\'ve tried a bit of restorative circles too - though the people we work\xa0with nicknamed it \'Conflict Kitchen\' because of the way the guy who\xa0introduced it to us described it - in that conflict is natural we just need somewhere to go with it - just as eating is natural and we go to the kitchen when we want to prepare food. We\'re still figuring out how to bed it in. I\'ve also worked a bit with NVC and follow Miki Kashtan\'s work most. I think the question you highlight in relation to Opencare is very pertinent - "how we engage with our own and each other\'s well-being". I\'m also wondering if you\'re already tuned in to Laloux\'s Reinventing Organisations - the passages on wholeness practices seem particularly relevant to what you mention about growing a culture that supports collective & mutual wellbeing. \xa0
\n\nThanks @Noemi for the link to the Enspiral Stewarding Circle - it looks like it\'ll shed light on something we\'ve been wrestling in to reality for a while - we\'ve been envisioning it as a \'network of fives\' like a beehive. The question we\'ve been aware of is how to create enough framework around peer-to-peer care without overformalising it and so it\'s interesting that others have been working with\xa0this balance too.
\n\nMental health is an ongoing focus within our working community too. @Woodbinehealth - I\'m guessing you\'ve come across the\xa0Icarus Project - I love their work and came across it when issues around how we define mental health became overwhelmingly\xa0real for my family. I love the way they frame their work as "by and for people who experience the world in ways that are often diagnosed as mental illness". I feel that this way of describing what we all experience at times when our mental health is stretched creates enough space so that people are not defined by their diagnosis.\xa0
\n\nIts contributed to my ongoing reflections on an organisation\'s mental health. I wonder if this is what you refer to when you say "collective mental health"? I\'ve noticed that the organisation\'s mental health seems unwell when there is too great a distance between various peoples perceptions of the organisations reality and its relationship to the world. It feels too big a gap and too likely to contribute to mutliple organisational personalities that can often be at odds with each other. We\'ve recently concluded a year long collaborative process that has generated really embedded alignment in core things like values, the assumptions and context we\'re responding to. The mental health of the organisation is noticeably improved.
\n\nI hope that these conversations will continue up to and during the event in October. Much to glean...
', u'post_id': 830, u'date': u'2017-06-28 13:44:00'}, {u'user_id': 4, u'title': u'Greatest potential gains? ', u'comment_id': 27645, u'content': u"What I'm reading is: you think mental health care is the low hanging fruit of preventative health care. Is this correct?\xa0
\n\nI would have imagined that the low hanging fruit would be lifestyle stuff: healthy eating, exercising etc. Communities are good at this stuff, because each person helps nudging the others. Can I ask you how the focus on mental came about? Who proposed it, what was the story, what specific problem are you trying to solve?
", u'post_id': 830, u'date': u'2017-06-15 23:21:50'}, {u'user_id': 3, u'title': u'Someone who knows about what could work at the group level..', u'comment_id': 26969, u'content': u'..is @alan who wrote a heartbreaking and heartwarming post (few people pull this\xa0off..) on Losing Hope and Gaining Hope. As someone who was in need of care, he is now doing advocacy work for mental health - and this works at the palliative level too, it reads very empowering. So encouraging.
', u'post_id': 830, u'date': u'2017-06-14 15:44:06'}, {u'user_id': 3367, u'title': u'Holistic health', u'comment_id': 26065, u'content': u'@alberto, thanks for the comments. \xa0While our resource center does focus on preventative health, one thing that has come to light in the last year is the paramount need for community mental health. \xa0At this point in NYC, there is still infrastructure for primary care and physical care within institutions. \xa0In addition, the regulatory and renting environment in NYC does not allow us to easily expand to include more "primary care" functions. \xa0But in addition, as we think about this idea of health autonomy, we are striving not to just replicate the old instutions but to transform the way we think about health. \xa0In that vein, we need to rebuild the idea of community and shared mental health as models to overcome the capitalist imposed isolationism that is so great here. \xa0We are thinking of treating acute mental health episodes, but to form the foundation for "preventative" communal mental health. \xa0
', u'post_id': 830, u'date': u'2017-06-14 12:22:58'}, {u'user_id': 200, u'title': u'Restorative Circles', u'comment_id': 25790, u'content': u'Hi @Woodbinehealth -- yes, a few of us (though not including myself) have done some basic training in Restorative Circles. I was a participant in one of the first, and i found it highly valid, appropriate and powerful. Another one is coming up, but it\'s slow progress, as we can\'t (and wouldn\'t want to) force people into addressing their conflicts through RC. One of our issues is that there is already quite a bit of stored up ill feeling -- resentment even -- between some groups of people with conflicting views or needs. Hopefully RC should lead to rebuilding trust, but that cannot be more than a hope at this stage. I have also personally been involved in informal mediation between different parties in drawing up a food policy for our shared spaces that respects both vegans (some of whom are highly sensitive to the presence of meat and fish in their eating space) and others who feel they need non-vegetarian food for their health and well-being. I don\'t know if this will come to a Circle sometime. It might.
', u'post_id': 830, u'date': u'2017-06-28 14:10:58'}, {u'user_id': 4, u'title': u'Why a challenge?', u'comment_id': 25076, u'content': u'Hello @Woodbinehealth , thanks for sharing your thoughts. Can I ask you in what sense your collective mental health has become a major challenge and focus? You wrongfooted me there, I thought your group was about physical and preventative health (though physical and mental are obviously connected).\xa0
\n\nAnd @asimong : fantastic story, and very good reflections there. Thanks so much. Yes, we are all juggling commitment and freedom, stability and excitement... it\'s fundamental, I\'m afraid. And not just in communal living, but also in traditional marriage and families, as you say. I liked this:\xa0
\n\nlet\'s all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment.
\n\nAmen to that.\xa0
', u'post_id': 830, u'date': u'2017-06-12 22:09:17'}, {u'user_id': 3367, u'title': u'care in practice?', u'comment_id': 24158, u'content': u'Hi @asimong, super interesting reading about your cohousing community and the strategies you\'re exploring\xa0in seeking ways to\xa0care for\xa0each other\'s well being. I\'m really curious to know more about your expereince with\xa0restorative circles and if the\xa0members who were trained have begun leading them. This is a model we\'ve been looking at for our group. Our collective mental health, especially\xa0in the last\xa0year, has become a major challenge and focus for us. We are not in a co housing situation now, but we try to share as much of our life and resources we can while living in a neighborhood together in NYC. Would love to hear any of your experiences or\xa0strategies\xa0for\xa0dealing with conflict, care for each others emotional,\xa0mental and spiritual well being.
', u'post_id': 830, u'date': u'2017-06-12 21:02:11'}, {u'user_id': 200, u'title': u'getting out and staying in', u'comment_id': 22761, u'content': u'replying to you, @Noemi , I agree it is very valuable for people to have open options for moving on -- from relationships as well as living communities. On the other hand, I value genuine heartfelt commitment, where you commit to staying (unless there is unavoidable danger or intolerable hardship in staying). As we become more economically interdependent (as I think we will be as our current economy unravels) we need to recognise as well that moving out is really hard to arrange sometimes. As it was in the old days for women in marriage. I\'m not saying go back there, I am saying let\'s all work hard on doing the work of growth and development in ourselves and in relationship, so that there is (nearly) always a viable option for staying, supporting commitment. I happen to believe that this kind of commitment is also very good in the long term for our spiritual growth.
\n\nI hope this makes sense of the importance I put on the living community, compared with the working community. We have got used to the idea that employment comes and goes. I would say, let\'s not get used to the idea that relationships and communities come and go, but instead that we all grow within them, and we find ways of strongly supporting other people growing as well. Hopefully, I look forward to this leading to stronger and more stable working relations as well, so that we can then have more long-term work stability. Not being stuck in the same work roles, of course: here too, we need to be growing and developing, and calling for more fulfillment in our working lives as well as our personal lives.
', u'post_id': 830, u'date': u'2017-05-20 09:46:04'}, {u'user_id': 3, u'title': u'Even in my extra limited experience, I completely agree', u'comment_id': 22476, u'content': u'Just tonight we were talking about this aspect with @Matthias and @Alberto as we are in the process of designing The Reef in Brussels - we are not set on Brussels 100% as 2017-2018 is a prototype and already we are looking for a more convenient space. As we we brought up Sicily (Italy), or Calafou (Spain) against Brussels, "having nowhere to go to" makes a difference, in our case should residents decide to move out because the setup doesnt work for them personally.
\n\nOurs is a rental situation, for now. I\'m thinking even when you acquire property and co-own it in some way, there needs to be a provision for getting out. Yes, it\'s costly, but then most personal relationships or life problems are, when they hit a wall no?
', u'post_id': 830, u'date': u'2017-05-19 22:13:23'}, {u'user_id': 200, u'title': u'Slight differences between living and working', u'comment_id': 21701, u'content': u'Thanks, @Noemi I\'m in a similar position having read some things about Enspiral etc. but not had any direct contact.
\n\nOne thing I will say, though, is that the emotional safety side of relationships struck me with particular force in the cohousing situation. At work, "it\'s just a job" - well, OK, some jobs have great personal importance, but as a rule one walks away every evening and weekend. In a cohousing (or other living) community, there is nowhere to walk away to. This seems to me to bring an extra level of emotional relevance.
', u'post_id': 830, u'date': u'2017-05-19 19:20:18'}, {u'user_id': 3, u'title': u'Learning from Enspiral, Loomio and in betweens', u'comment_id': 19718, u'content': u'I really like what these guys are doing, althouhg I dont know them personally nor have I been in touch with their work too much. But I do read.
\n\nTo skip to your interests @asimong , they are very rigorous in governance, and have a system where each person\xa0in the organisation has a steward\xa0who is sort of in charge of their wellbeing: they call it the stewarding circle.
\n\nAlso about wellbeing, this ties nicely to what @johncoate wrote above: need for codification (via allegiances, settling rituals/practices, social contract, decision making\xa0model or what you want to call it..):\xa0
\n\nthere is no such thing as a perfectly inclusive space. If you try to include everyone, you\u2019ll include people whose behaviour excludes others. Community is defined by its boundaries, so the question becomes, where do we want to draw our boundaries? What behaviours do we want to include? If someone is getting close to a border, how do we want to treat them?\xa0(source)
', u'post_id': 830, u'date': u'2017-05-19 17:08:00'}, {u'user_id': 200, u'title': u'Thoughts filled with experience and wisdom', u'comment_id': 17021, u'content': u'Thank you, John @johncoate for this reply which makes great sense to me, and reading of your experience brings me more insight.
\n\nSimon
', u'post_id': 830, u'date': u'2017-05-19 19:15:30'}, {u'user_id': 2915, u'title': u'And some other thoughts', u'comment_id': 15392, u'content': u'First let me say that I was so fascinated by your cohousing community I spent the past hour reading many of the documents and web pages. \xa0Much admiration to all of you. \xa0I would come by for a look but I\'m in California. \xa0Maybe sometime soon..
\n\nYour Articles of Association and other agreements to which one signs when joining are generally material in nature. \xa0There is a document about\xa0shared values, of which the formal ones are ecological values. \xa0But it also says "we would like our community to be built on trust, respect, friendship and understanding." But those four are not part of the formal agreement from what I could see.
\n\nThose four are daunting to put into an agreement to say the least. \xa0And maybe the group or the founders don\'t want such things to be formalised not because it is hard, but because it is better to not get formal with them.
\n\nBut the process for joining involves a lot of face time with community members over a number of visits and meetings. \xa0I assume that when it comes to\xa0a vote \xa0for admitting someone, most everyone considers the whole person and whether or not they will be good cohousing companions.
\n\nBut disagreements happen. \xa0Things go unsaid and build up. \xa0So what then?
\n\nMy experience in community is different from yours in that I lived for a number of years in a total collective that described itself as a "spiritual community." \xa0It was based around a charismatic leader/teacher who did in fact have quite a lot of say in just about whatever he wanted - which was a lot. \xa0Still, we were a large group\xa0(we started at about 200 and grew over the course of 8-9 years to about 1500) and since we shared everything it was a matter of survival that at the household, work crew and personal level we have a\xa0day-to-day way of resolving conflicts.
\n\nI need to say at this point that we could not sustain ourselves as a collective (for a variety of reasons I won\'t go into here). \xa0After 12 years we "fired" the guru and changed into a cooperative that exists to this day, though most of us are not formal members.\xa0 \xa0But we did get good enough at the process of bonding that included intense "working it out" that our tribe outlasted the structure. \xa0And the tribe that lives somewhere else (concentrations in northern California where we started, Austin TX and around\xa0NYC) outnumbers those who remain on the land in Tennessee. \xa0But the tribe\xa0itself is strong and real among us in a way that has not diminished regardless of where we live.
\n\nWe live all over now but the deep bonds didn\'t diminish. \xa0They were built day by day, hour by hour living and depending on each other.
\n\nWe never got very formal about codifying how people get along except we did follow some simple age-old practices.
\n\nThe basic thing we started with\xa0was an allegiance to the truth. \xa0Not in a religious sense per se (as in "I am the Truth, the Way, etc"), but just that every person was going to try to be as truthful as possible with themselves and everyone around them.
\n\nNext, compassion. \xa0People who live together, and don\'t want to be a bunch of robots, need to find ways of being ok with each other\'s ways of being. As it said in a recent artticle about why Findhorn has lasted so long one guy said, "everyone is willing to look at their stuff."\xa0
\n\nAnd, we agreed that the vibes matter. \xa0Not that everyone is going to be fake nice all the time, but that human consideration very much includes the\xa0vibrational space between people and is thus open to discussion as much as any material item.
\n\nA group may\xa0agree (tacitly or by not adhering to anything that isn\'t in a written agreement)\xa0or, a group may just settle over time, into a state of\xa0not pointing out when someone bothers you, or you can see that the other person is playing some sort of game or being manipulative, or being afraid to say something, or just not having the energy for it, then resentments\xa0build up. \xa0At a group level it can get factional. \xa0Let it go too far and it wrecks the social bonds.
\n\nOne problem with individuals and groups is not knowing what is, and is not, ok to talk about. In our community we went the route that there is nothing one cannot bring up. \xa0High risk for sure. \xa0Thus we got a lot of practice\xa0doing this with many screwups and many satisfying sessions.
\n\nIn deciding whether or not to say something inconvenient to someone, we thought it best to start by considering, is it helpful? \xa0Is it kind? \xa0How much of my impression is really coming from the other person and not from my reaction to it? \xa0The last one is important because in an honest discussion one\'s motives for bringing something up very often get questioned, like it or not.\xa0
\n\nIf we couldn\'t come to terms, or a good feeling, we agreed that any one of us would act as a fairwitness to try to arrive at a place where everyone feels good and right and it\'s fine to move on.
\n\nAnd if that didn\'t work we would expand the circle. \xa0Since we lived close together that often happened organically. \xa0Without having any statistics, I think we did resolve huge numbers of disagreements.
\n\nI guess because we called ourselves a "spritual community" that embraced a very eclectic mix of sources (we were hippies after all), we would often advocate for our various points of view using tenets of other religious and spiritual practices as references.
\n\nOne of them was the Buddhst idea of not getting caught up in "praise and blame." \xa0This translated for us that in giving and receiving feedback, we should stay mindful to not give or take either praise or blame. \xa0When delivered with compassion then, it mitigates the perennial problem of somene feeling attacked and then defensive on one side and on the other\xa0the person giving the feedback delivering it with aggression as if to say "I blame you for this problem." \xa0(Or infinate variations of these and more.) It is hard to both give and receive feedback, so there can never be too much empathy.
\n\nI hope this doesn\'t sound too patronising. \xa0It looks to me from the pictures of the members that your community is loaded with great people who surely have great understanding of how to get along.
\n\nI guess this was my long-winded way of\xa0saying that if nothing is formal as to how one is to behave with others and how people are to deal with certain relationship problems, much can be achieved if there is a general consensus that it\'s ok to say things to each other about the more subtle mental and "vibratory" aspects of living together and that it will get a fair hearing and be delivered with kindness, even if one is annoyed. \xa0
\n\nOne thing I do know about why one should not avoid conflict if something needs to be talked over, is that relationships with any history of resolving conflict are stronger because built into the bond is the\xa0knowledge that\xa0you can resolve something because you actually did it.
', u'post_id': 830, u'date': u'2017-05-11 17:56:00'}, {u'user_id': 3374, u'title': u'Some thoughts
', u'comment_id': 8009, u'content': u'Hello @asimong,
\n\nThe issues you\'re facing in your cohousing community actually sound a lot like the type we face in my university, especially how to align views on wellbeing when everyone comes from varied backgrounds, with sometimes completely\xa0divergent perspectives.
\n\nOne thing we\'ve taken to doing, in order to give a space for the range of views and thoughts\xa0on these topics is we hold semesterly fishbowl discussions. Possibly your community could benefit from adopting this format as one of its\xa0methods for exploring issues that arise.\xa0
\n\nAnother point I wanted to touch on, is when you discussed wellbeing you asked if you could depend on informal relationships alone. I think it\'s important that individuals have access to professional care if/when they need it, but that doesn\'t diminish the role that informal relationships play in getting people to help and supporting them in their struggles. Along those lines, I think you might be interested in looking into bystander training, where members of your community who are interested can learn how to best support people, and connect them to the care they need. I\'m not sure where you\'re based, but one I can recommend is Mental Health First Aid, which is offered (often for free) in a number of countries.
\n\nHope some of this is useful! I would also love to hear more about how these issues are already being addressed within your community.
', u'post_id': 830, u'date': u'2017-05-10 17:19:09'}, {u'user_id': 3400, u'title': u'Et si nous adoptions de bonnes habitudes et des outils libres ?', u'comment_id': 33815, u'content': u'Je rejoins @Noemi : une propostion int\xe9ressante @Yannick, ainsi que celle de @Jack-Dushica de se conna\xeetre pour aller vers l\'autre !
\n\nSi l\'on agit dans une vision de bien commun, sans doute devrait-on \xe9galement veiller \xe0 rendre le travail collectif accessible, afin que d\'autres puissent le reproduire et l\'am\xe9liorer ? Les standards socio-\xe9conomiques actuels tels que le copyright favorisent cependant la comp\xe9tition et l\'accaparement des ressources par une minorit\xe9. Pour \xe9viter de refaire la roue, il suffit donc de partager ses innovations sous licences telles que GNU AGPL, CERN OHL, CC BY SA, MIT, PPL.
\n\nAu del\xe0 des outils, l\'\xe9tat d\'esprit est bien essentiel. Peut-\xeatre devrait-on aussi veiller \xe0 utiliser des technologies qui ont un \xe9tat d\'esprit collaboratif \xe9galement. Malheureusement, tes trois exemples n\'en sont pas : Trello, Slack et Github ne sont pas des outils libres et open source ! Encourageons alors des communaut\xe9s et plateformes libres, telles que Wekan, Gitter et GitLab !
\n\nEt pour aller plus loin, adoptons des syst\xe8mes de redistribution de valeur, qui permettent une tracabilit\xe9 des efforts individuels et collectifs, remplaceons les concours qui cr\xe9ent pl\xe9thore de perdants par des outils d\'investisement collectif, transformons les espaces "collaboratifs" bas\xe9s sur la r\xe9tention de membres par des r\xe9seaux mobilisant par leur impact soci\xe9tal !
\n\nUne lecture \xe0 recommander, en lien avec l\'illustration de @Nadia : Benlker (2016). Open Access Commons.
\n\nEn esp\xe8rant apporter du grain \xe0 moudre pour ton caf\xe9 quotidien,
Bien cordialement,
', u'post_id': 33747, u'date': u'2017-07-15 12:33:29'}, {u'user_id': 3, u'title': u'I really enjoyed your post', u'comment_id': 33806, u'content': u"I have to say your attitude\xa0shows - I've had early morning coffee with you and I really enjoyed the openness and goodwill to serve collaboration\xa0by generously connecting people and ideas.
\n\nThanks for your time Yannick! (wont ping you to not distract you more :-))
", u'post_id': 33747, u'date': u'2017-07-15 11:09:50'}, {u'user_id': 8, u'title': u'Everyday life', u'comment_id': 33793, u'content': u'Salut Yannick,
\n\nHey how are you doing? Sorry we missed one another during the festival. I kept being hungry after the shows so left without having a drink
I read the enspiral post, it was interesting- \xa0thanks for sharing! You\'re right, it\'s not the tools but\xa0people. There\'s some valuable advice in there, maybe we can try some of them out here. But this term, emotional labour, it feels like\xa0
\n\nWhen we were in Matera with unMon, a local pharmacist held a lecture about the old\xa0system of community provided healthcare. And why it disappeared with modernity. According to him it\xa0was basically held together by the need to manage an important resource- water.
\n\nIn Matera there is a huge man-made underground reservoir of water, and a system for accessing it through wells. Each well is situated in a courtyard shared by a number of individual family houses. They collectively manage their shared well and according to him this was the key reason as to why there was\xa0such a strong sense of neighbourhood and mutual care amongst residents. Because of the day to day interaction and mutual dependence on one another to responsibly manage the shared resource. When the state moved people into modern dwelling (in the 80\'s?) then they had running water etc. No need for daily interaction and no dependency - the system broke.
\n\nThey also did things like ran communal bakeries instead of having individual ovens. I would say these are examples of cultures of collaboration born out of material necessity. This has been consistent with my own experience around how collaboration happens. It doesn\'t happen without a compelling reason... The enspiral crowd is running an interesting experiment. It seems to work within one context where people have aligned interests and a compelling driver of\xa0collaboration (economic activity), possibly other things too?
\n\nSo how do you build it if you live in societies where people\'s material needs are mostly satisfied? Maybe have a look at Jordan\'s experiment in stockholm with chickens... Curious to hear what you think.
', u'post_id': 33747, u'date': u'2017-05-14 15:30:59'}, {u'user_id': 3293, u'title': u'Thanks for sharing', u'comment_id': 33776, u'content': u'Yes i\'m well aware that it\'s from an inner circle that collaboration needs to thrive, that is also why i love my coffee moments with passionated people, listening to their stories is rewarding on itself. I try to be at that moment as much possible in the present, just reactive enough toward that person.
\n\nThanks for sharing your thoughts about the subject
Well collaboration, is a term within it which includes a large field of understanding the term itself. @Yannick we were used to hear the word "Crowd of sheeps" which was a very powerfull intrigue to make people become more selfish and viewing from the wrong corner has made them to feel and get separated, so that the word collaboration was mistaken with a conspiracy word "Crowd of sheeps". It has nothing similar in this two words and i wuld like to concetrate more on the collaborative ways and methods.
\n\nThe collaboration itself, should begin as an inner movement and will, to enlight you within you and make you spread your aura with other people around you, startin from your home where you live, your school or college, your working place, your company or your weekends house neighbours.\xa0
\n\nYou should concentrate on the connections to every each person neat you, and try to connect them with your inner will and try to transmit the message also with your aura. Start learning new things, start leraning new cultures and characters.\xa0
\n\nMaking compliments and new friendships is the best way, to explore each others mind and ideas, collecting mutual interests and creating fellowships and spreading the collaboration breath.
\n\nI am more spiritually bounded to this idea, because I am also a very social person and the topic was bolded for me as i readed it, and I hope you will endure the way.\xa0
\n\nWish you all the best...
', u'post_id': 33747, u'date': u'2017-05-09 20:45:47'}, {u'user_id': 200, u'title': u'New fields for ants?', u'comment_id': 33373, u'content': u'Interesting thread I was new to. Personally, even though I\'m no giant, I love contributing to these really new trans- or inter-disciplinary areas. I was deeply impressed, around 1975, reading "Scientific Knowledge and Its Social Problems" by Jerome R. Ravetz, originally from 1971. Rom Harr\xe9 used to recommend it in his lectures in Oxford.\xa0 It had a great chapter headed "Immature and ineffective fields of inquiry" (you can get some results from searching for the phrase in quotes) which set out some of the dangers, and excitements, of these areas.
\n\nIt\'s easy to imagine this is all about giants, and maybe it used to be, but I don\'t think that is so any more. The world (of knowledge) has grown so vast, no one is a giant anymore. If instead we constitute ourselves as collaborative, cooperative intelligent ants, though, I think we can make progress. Ants (real ones) do so much with so little individual intelligence. What could we do, if we were to coordinate with the power of ants? This links so well across our discussions ... it is the culture of collaboration that is key, and that in turn rests on how we interact day to day -- "micro" level, you could say. To me, it involves deep listening to each other, just as care more generally does. It involves co-creating, and co-managing, a culture in which the commons is held in higher regard than the individual, and where the commons wisdom knows who to ask about particular issues; where we all help to redirect, rather than individualistically claiming intellectual territory for ourselves. In the network, some people are valuable more as nodes, others more as links.
\n\nMy personal interest in the thread might start off by asking about the nature, the provenance and the governance of tags themselves.
', u'post_id': 6483, u'date': u'2017-07-15 03:39:22'}, {u'user_id': 4, u'title': u'New fields are for giants', u'comment_id': 33372, u'content': u'... not for the likes of me. More humbly, I see a\xa0market opportunity. Consulting companies grow by "owning" a unique methodology; without it, you are just cannon fodder, competing on price. My role in ER is to build a niche where we can claim to be number one in the world. Even if it is small, it is probably enough to ensure interesting work and a measure of prosperity.
\n\nThanks for pointing to the text you wrote. The distinction does not really apply here, because one of the ingredients of our method, ethnography, is, by your definition, itself trans. I guess that makes SSNA "meta", or something! But the way I think of it is rather inter: let ethno people do their thing as normal, let network people also do their thing as normal, and\xa0then\xa0build a new layer on top of it that enhances both and brings about a new synthesis. Problem is, to interpret the new layer (SSNA itself) you need to speak both languages. It speaks clearly to me, but I need some effort to make the ithers see.\xa0IMHO the best SSN analyst is someone like @Noemi or @Amelia : social scientists with an inclination towards formal reasoning. The network science is, as of now, pretty basic, so it\'s much easier for them to grasp it than it would be for a network mathematician to teach herself the anthro and socio. Maybe later (if there is a later) the need for mathematical sophistication will increase.
\n\nIn\xa0a way, we are all children of Jacob Moreno and the sociometrists of the 1950s. Not by chance, these were all socio people, and Moreno himself was a psychiatrist (originally from Romania, like Noemi!).
\n\nI would be super-interested in the opinions of @NiekD and @Scigrades , of course!\xa0
', u'post_id': 6483, u'date': u'2017-07-14 09:43:37'}, {u'user_id': 3362, u'title': u'A new field or a new method?', u'comment_id': 33371, u'content': u'From the methodological paper I gather you consider it mainly a method at this point. Then it makes sense explaining it in terms your intended user base understands.\xa0If it\'s part of a new field, it makes sense to explain it in and of itself. A field being a set of methods, people, language, ... that have crossed some threshold.\xa0Then there\'s less\xa0need to justify its usefulness for another field or set of users.
\n\nThe line is blurry because it\'s interdisciplinary research: you\'re building new tools. Thinking about it more deeply, it makes sense to me to place what you\'re doing in a spectrum from monodisciplinary research to transdisciplinary research.\xa0This excerpt from my workshop on interdisciplinary collaboration & communication explains a little.\xa0It seems to me you\'re doing the interdisciplinary thing, but not yet to the extent it can be considered a new field?
\n\nFor me this classification in terms of mono, inter, trans is tied to communication efforts. In the mushroom material research, Elise and I went\xa0from multidisciplinary to interdisciplinary and ultimately transdisciplinary. Now we\'re at the point where we actively involve society in the research through workshops & outreach. Initially our communication with each other had to improve, then to other professionals (eg. designers, biologists) and ultimately to the public (hobbyists, children, ...). It took progressively more effort in terms of communication and practical things: translating experiments into digestible, accessible\xa0activities for people to interact with). I feel like the payoff is there (we get ideas, connections, an audience, ...), but going that far with communication does take a lot of time. We can do it because I\'m not involved in the lab research anymore, only as project manager for outreach\xa0and missions.
\n\nThere is of course also the argument that what has been researched using tax money should be made accessible and understandable apart from there being a payoff for your research by\xa0involving society.
\n\nMaking complex information understandable takes time, so the most economical solution is to define your audience and write for them, rather than for any\xa0audience. The latter means taking into account the group that has the hardest time understanding, without compromising in content or form\xa0too much for any group. That is hard and you always end up losing detail or nuance. You wouldn\'t write so that an 8 year old could understand you, even if you were perfectly capable, unless your plan is to go specifically to them with your post.
\n\nA\xa0technical person is okay with a separate glossary page. For engaging a non-technical person, who perhaps has no experience with technical texts and their structure, having to check words in a glossary may break the story and their attention. Your post on your own blog about the results of the Horizon 2020 research is pretty good overall. I see the distinction between result (good potential to be\xa0relevant for a non-expert) and analysis tool (less potential to be relevant for a non-expert), yet it comes down to your own ambitions, judgment and\xa0what you want to say to whom.
\n\nSo all in all, I understand the communication aspect in this context in terms of\xa0where you\'re at with the research (new field\xa0or not? Multi, inter, transdisciplinary?), where you want to go (Multi, inter, transdisciplinary?) and how you want to do it (who to involve and why?).
\n\nMaybe @NiekD or @Scigrades can pitch in as well.
', u'post_id': 6483, u'date': u'2017-07-14 08:53:06'}, {u'user_id': 4, u'title': u'Ethno/anthro', u'comment_id': 33370, u'content': u'We set out to build a research method that extends the reach of ethnographers and other qualitative researchers. GraphRyder is not a finished product: it is a tool for analysis. Once researchers have interpreted the data, with the help of a lot fiddling with it, they are ready for returning the results of the whole exercise.\xa0\xa0The non-expert-ready form of approaching the data is generally post-analysis: a report, an executive summary, an infographics, depends how much\xa0you want to editorialise it.
\n\nThat said, you make a good point. When we were writing the methodological paper, I realised there are\xa0no\xa0experts on this stuff. Some people understand ethnography. Other understand networks. Almost no one understands both. Even in the research group we tend to be either-or, with maybe a vague idea of what the other camp is all about (and the vast majority of humanity, of course, understands neither, nor does it care). That leaves us with two strategies: either we write in a heavily context-dependent way (explain ethnography when submitting to netsci journals, explain graphs when submitting to anthro journals); or we assume that no one knows anything at all. In the case in point, we were submitting to something called the Internet Science\xa0Conference. Whatever the hell Internet Science is, it is unwise to assume an audience that understands networks like @melancon , or ethno like @Amelia . So, we actually introduce all concepts (not bad for a 7 pages paper!):
\n\nEthnography is a qualitative research technique aimed at discovering how a certain group of humans perceives a set of issues [...]
\n\nSo: what you propose is relatively simple to implement, though we would definitely have different pages for the background information. Actually, I already added a page on key concepts. Why, the wiki is three hours old! But my question to you (and all) is:
\n\nIs this interesting for people who are not involved with ethno/anthro/qualitative research?\xa0Should we even make the effort to talk to them?\xa0
\n\nFinal remark for @WinniePoncelet and the "science communication" crowd in Reagent and elsewhere. I am def no expert, but I find that you cannot dumb down the "how did you get this result" question more than so much. For example, a much simpler work like my own network analys of Horizon 2020 consortia looks like this. Going all out on it, restricting myself to only one result, spending time in crafting a nice viz, writing with Hemingway App, etc. I managed to get to this. And that\'s not an analysis tool, but an actual result!\xa0What\'s your experience on this issue?
', u'post_id': 6483, u'date': u'2017-07-13 15:52:58'}, {u'user_id': 3362, u'title': u'Who is it intended for?', u'comment_id': 33368, u'content': u"Who are you aiming to reach with the wiki?
\n\nIf it's anthropologists & network scientists the wiki is good. Then again, the explanation during the call was also fine.\xa0Experts and really interested non-experts will read you no matter the effort you put in polishing the information.
\n\nIf\xa0you want to a non-expert that's not particularly interested or aware of the possibilities, you need to present it differently. More explanations (eg. what is an ethnographic code?)\xa0and examples (eg. Winnie wants to know more about influencing policy, how is the software useful for him?) need to be added. I'd also structure the information differently, such as putting the relevance/novelty first (eg. the collective intelligence bit)\xa0or adding an element of storytelling (like you did in the policy maker example at some point).\xa0Right away there needs to be a justification for a non-expert to take the effort to understand the rest of the wiki.
", u'post_id': 6483, u'date': u'2017-07-13 14:25:26'}, {u'user_id': 4, u'title': u'Not exactly', u'comment_id': 33367, u'content': u'What I had in mind was not inline help. That needs to be super-short, agree. I have\xa0in mind a kind of user manual.\xa0
', u'post_id': 6483, u'date': u'2017-07-13 13:46:48'}, {u'user_id': 3, u'title': u'Hm', u'comment_id': 33366, u'content': u'Thanks for putting this together @Alberto , and Winnie for note taking.
\n\nWhile it is clear for you, and me, I find if this is meant as a user support text \xa0it should be more hands on and placed in a pop up in the web application. Some language might be toned down to less technical:\xa0
\n\nExample
\n\n"Which codes connect to which other codes. For example, the network could be disconnected into "islands" of codes, with no code in each of the islands ever occurring with any code in any of the other islands. This would be a strong indication that the informants have not associated concepts with each other.\xa0think there are entirely separate, mutually independent sides to the problem at hand. In a less extreme variant of the same scenario, the network could be highly\xa0modular.
About my question 2 above, ping @Costantino . I think you said the Playbook is to be written in markdown, correct? This means that wiki pages can be lifted and copied into the Playbook, so me writing in the GitHub wiki is not so bad.
\n\nBut even better: do you have a Playbook chapter template that we can use for the documentation?
', u'post_id': 6483, u'date': u'2017-07-13 12:41:40'}, {u'user_id': 4, u'title': u'Also ping', u'comment_id': 33362, u'content': u'@Amelia | @Noemi | \xa0@Federico_Monaco | @melancon | @Jason_Vallet\xa0
\n\nAs I said in Bordeaux, high time to take the documentation of\xa0software & methodology very seriously. The wiki page is an attempt to formalise the (procedural) knowledge sloshing about in the community call.
\n\nI felt the same, @WinniePoncelet . I have put up a quick page on the GraphRyder repo\'s wiki to explain:
\n\n\n\n\nIs that concrete enough? It seems clear to me, but then I spend a lot of time with this stuff.
', u'post_id': 6483, u'date': u'2017-07-13 12:31:12'}, {u'user_id': 3362, u'title': u'Personal reflections', u'comment_id': 33346, u'content': u"I had used the software before during a Masters of Networks event, so I was already kind of familiar with it. As an introduction I found the call a bit too technical. It went into the software and its features more than the 'why?' and the usefulness for non-experts. The latter would be more relevant to go into for an audience like we had at the call. The software is also clearly built for research at this point. That being said, I found the technical explanation to be very clear.
\n\nThe Google Hangouts was full at some point (10 people) and some people were left out, so it's worth considering a different platform. Many people seem to be interested.
", u'post_id': 6483, u'date': u'2017-07-13 09:42:48'}, {u'user_id': 3362, u'title': u'Notes from the call', u'comment_id': 33316, u'content': u'We made some notes during the call, here they are.
\n\nIntros:
\n\nGuy - researcher working on the software & network science part of Open Care.
\n\nWinnie - curating open and citizen science theme. Involved in biohackerspace in Ghent, Open Insulin collaboration.
\n\nAlberto Rey - working on citizen science for the festival together with Winnie, and fly fishing.
\n\nMichael - new to Edgeryders, figuring it out
\n\nGehan - curating Architectures of Love theme: researching conditions in which opencare happens, policy. Works at Galgael trust. Conditions evolve not entirely by design.
\n\nAmelia - Edgeryders\' ethnographer. I use Graph Ryder to help with the data analysis! I\'m an anthropologist and my home is London
\n\nFederico - sociologist at university of Parma. Doing anthropological research in makerspace WeMake.
\n\nRachel - invited by Winnie, met at Biofabbing convergence. Part of Hackuarium, into citizen science and choices we can make that influence our health (risks). In on citizen science track for the festival.
\n\nSome more people joined during the session: Alberto, Bernard
\n\nThis session is not technical, rather a walkthrough for the GraphRyder program.
\n\nWhen signing up on Edgeryders, you consented that your \u2018data\u2019 (posts, comments, \u2026) would be used for research.
\n\n\n\n\n\nPosts have tags. You can navigate the tags and then go back to the comments.
\n\n\n\nLink tags that co-occur in conversations. Look at links that appear more frequently. Slider helps to focus on strong links. This helps to analyse why these might be appearing more frequently.
\n\nThis can be accessed following the url: http://graphryder.opencare.cc and a detailed view: http://164.132.58.138:9000/index.html#/dashboard/globalView
\n\nAware of the issues in terms of navigation around the various websites. Suggested that a simple webpage is created that links to the various sites and gives an outline.
\n\nKey word: Autonomy. Program grabs all tags that autonomy is linked with. It\u2019s linked with a lot of key words.
\n\nHigh score tags that link with \u2018autonomy\u2019. You can access into the original content and posts.
\n\nThe tags are made by an ethnographer. We access the whole conversation at once.
\n\n\n\nHow autonomy connects with strongest connection. An association made by the conversation itself. You can read the comments and posts so you can figure out why people think these two things are connected. When someone comments on a post, chances are they will make similar comments and be tagged with the same label/s. However they will often bring something new into the conversation that will create association with new tags.
\n\nThe innovation is related to the thread and it denotes new tags/elements brought to the conversation\u2026 indication of how much the thread/discussion added to the conversation. If the number is high it means many new concepts were brought into the conversation. Amelia: we haven\'t properly tested the innovation theory - so it\'s not to say that higher "innovation" = more interesting, it was an idea we had. So don\'t assume posts with lower innovation tag aren\'t interesting
\n\nWe\'re looking for views of community members as to how to use it. Post on the platform and ping \u2026. Guy (@melancon) or Jason (@Jason_Vallet ).
\n\nAmelia: now we have the link we can experiment on our own and then come back and discuss further on the next call
\n\nDetangler view - people on the left and tags on the right. Use the example such as Alberto\u2019s post some time ago that follows how a policy maker might use Graphryder as a tool.
\n\n\n\n\n\nAmelia and Jason will do a session at OpenVillage. This was the first in a series of 3 demos on navigating the GraphRyder software. They\u2019ll shape the session considering the input of people in the following calls.
\n\nSome questions for further discussion:
\n\nHi @Noemi!
\n\nThank you for your feedback, and for the support regarding OpenVillage. We are preparing the texts for both proposals, we keep you posted!
', u'post_id': 33289, u'date': u'2017-07-14 14:00:58'}, {u'user_id': 3, u'title': u'From residence to #OpenVillage', u'comment_id': 33315, u'content': u'Guys, first of all super impressed by your documentation with which I spent a bit of time these days - I learned if not from the science aspects (I\'m no expert), from the way you organised and structured the information. Good way of documenting @breathinggames !
\n\nFor the festival, we agreed we\'ll be happy to finance your trip (a shared small travel grant reimbursed after the event) - and what remains is two things:
\n\n1) \xa0Hammer out a short description of your session (intro +\xa0format: demo + open discussion around i.e.\xa0certification of medical devices + who can participate), and point us to hi res photos we can use for promo.\xa0\xa0@WinniePoncelet \xa0is already or will\xa0be in touch if support is needed.
\n\n2) For\xa0the panel on funding and sustainability:\xa0put yourselves forward as panelists/ or simply add a contribution to shape it. @ Bernard in the team, can I ask you to sign up with a personal account and leave a comment explaining your experience in Switzerland and the game you propose to follow the panel? the more detailed your comment the better\xa0I believe. Here is the session in the making:\xa0The Edge of Funding
', u'post_id': 33289, u'date': u'2017-07-12 20:47:00'}, {u'user_id': 3643, u'title': u'Yes, this door is closed. A new one ', u'comment_id': 33476, u'content': u'Yes, this door is closed. A new one opens.\xa0
', u'post_id': 6401, u'date': u'2017-07-14 12:09:43'}, {u'user_id': 3, u'title': u'This session is being discarded if I got it right', u'comment_id': 33471, u'content': u'@ewoudvenema is no longer able to participate/ lead its development, right?
\n\nSo we will have to move on without, unfortunately.
', u'post_id': 6401, u'date': u'2017-07-13 09:53:29'}, {u'user_id': 3613, u'title': u'...picking up this thread again', u'comment_id': 28273, u'content': u'@ewoudvenema - picking up this thread again, could this form a session as part of the Architectures of Love theme? The kind of environment that would be created in a circle experience would reveal a number of harder to perceive\xa0conditions for creating the \'microclimates\' that generate our natural impulse to care for one another. Some of this is expressed through our relationships to money. It\'d be good to check in with where yours/others thoughts are on this?
\n\nOr has this gone elsewhere in the program following the call with @Nadia?
', u'post_id': 6401, u'date': u'2017-07-05 08:08:58'}, {u'user_id': 8, u'title': u'Ewoud proposed a call tomorrow at 11 am', u'comment_id': 27489, u'content': u'It\'ll be on the community call google\xa0hangout space . I\'ll do a writeup if you don\'t make it in person
I think it will make for a meaningful session.. Especially for people who know each other a little but perhaps not enough. We stand to learn a lot about others through those conversations.. tabu in most contexts.\xa0
', u'post_id': 6401, u'date': u'2017-06-17 09:27:34'}, {u'user_id': 8, u'title': u'Money I think is a nice scary topic', u'comment_id': 27232, u'content': u"It would be helpful I think. It's messy and many relationships break over this topic. If we are to have a thriving, truthful space it is important to figure out. Let's have a chat about this early next week?
", u'post_id': 6401, u'date': u'2017-06-16 16:26:36'}, {u'user_id': 3643, u'title': u'The topic could be: openness itself', u'comment_id': 26687, u'content': u'What do you say if we explore openness and creative energy itself. We could explore this theme. How can we be more in alignment with ourselves/ our own creative energy? My experience is that when I\'m good in my energy I use a combination of being both intentful as well as open to whatever comes up (inside of me). So it\'s a combination of receptiveness and creative intent. So how can one cultivate the quality of being sensitive/ receptive and powerful/ intentful? Vulnerable as well as powerful. Loving as well as clear. Open as well as practical and creating physically (in whatever form excites one the most).\xa0
\n\nI\'m excited about this theme. Would you like to explore this using the circle of openness? We could for instance pick a week at The Reef where we have circles every afternoon/ evening, while during the day everyone goes about their "normal"/ personal activities.\xa0
\n\nWhat do you say? @Noemi, @Nadia, @Matthias, and others...?\xa0
', u'post_id': 6401, u'date': u'2017-06-16 15:01:42'}, {u'user_id': 3, u'title': u'"Groups can go very deep together when they are guided properly"', u'comment_id': 24719, u'content': u"I think that's a crux, you said it yourself it's an art. Okay, people can share a lot or a little, but if others are to contribute somehow to understandign things better it means that a facilitator conveys when the conversation can linger\xa0or move on?\xa0I dont think you understand things just by saying them out loud in a group, so you need attention; but for the group it's also important that it stays relevant somehow. No matter how good a listener you are, or..?
\n\nIt seems like quite a fine line, especially if the space is loaded with emotions.\xa0
\n\nEach afternoon and evening we'll have space for self-organised sessions, but a circle of openness would be more organised i think - if you see a topic from the opencare conversations that would work, feel free to propose it. I will be on the lookout too! Big thanks <3
", u'post_id': 6401, u'date': u'2017-06-16 11:51:00'}, {u'user_id': 3643, u'title': u'Circles of openness', u'comment_id': 24534, u'content': u'Hey @NADIA\xa0@GEHAN and @NOEMI,\xa0
\n\nIn my experience it these circles work very well when the group shares a common willingness to receive, listen, and is open to go into deep experiences. Also what works well is to set a clear invitation and some simple guidelines, such as the ones I described. They help the group process and give a certain structure to build up momentum.\xa0My experiences have been diverse. I\'ve experienced beautiful gatherings where love, depth and understanding were shared among all participants. Sometimes when the group was mixed deeply sharing also lead to some confusion as these depths were not familiar to everyone and not everyone seemed to grasp the depth of the experience of someone else. Although I think it didn\'t harm or shock anyone too much, I do think it may have lead to some confusion. For instance, I once went very deep receiving the talking stick and staying silent for a few minutes, all attention on me, I didn\'t want to "just say something" so I stayed present with my inner dynamics (and doubts) in front of everyone. Finally, I said something that felt true to me. So I remained connected to my inner truth. The woman who was sitting next to me didn\'t know how quick she had to say something when I gave her the talking stick. Ever since our contact between me and the woman have been somewhat weird. Coming to think of it, I should have probably talked to her sometime and exchange perspectives lightly.... (oops).\xa0
This particular meeting was organized by a friend of mine btw and was a gathering of about 20 people, which is quite big for such a sharing. I\'d say depending on the size of the group there will be different forms and formats that suit best the conversation. Not necessarily the bigger the group to more superficial. Groups can go very deep together when they are guided properly. This is a true art. And ideally, one question/ sharing leads to another, being able to deepen the conversation coming closer to opennings. And, maybe most importantly everything is good. So not resisting anything nor having an agenda helps for creating the space to be who you naturally are.\xa0
\n\nI believe the Circles of openness serve best around a certain theme that is loaded and which everyone has experiences with: I organized a series about money and I participated in one about sexuality. Both topics lead to a very vulnerable and warm sharing and brought everyone closer together. Also I think Circles work well for existing communities that work or live together, as tensions may arise during the daily practices. The latter I have some experiences with at the Synergyhub and the principle we used was to share from what\'s alive in you at the moment. This worked pretty well.\xa0
\n\nI also initiated a circle once during a workshop where people didn\'t really know each other and there wasn\'t a real theme or topic. In that setting it didn\'t feel really appropriate to do a sharing, as apart from being human and sharing a similar human experience (so there\'s always (some) interest), \xa0there wasn\'t really a common intention or relevance to have this talk together. So I wouldn\'t organize a circle "out of the blue" again.\xa0
\n\nMost of the meetings I was with had both familiar people and strangers. As long as the intention for the meeting is clear, it\'s no problem and good examples will follow.\xa0
\n\nMost circles I went to lasted for about 1 to 2 hours. Although probably you know about retreats/ satsangs for instance with Bentinho Massaro that take about the whole day (with sessions of about 1,5 to 2 hours each). Have to say that during these days Bentinho (or some other "teacher) is the one who does most of the talking. Yet, he knows how to bring a group into depth. So, even though it\'s a different form, there\'s also huge transformation happening during these meetings.\xa0
\n\n@Nadia about organizing this at The Reef. I would say a circle is very appropriate and effective if there is a theme or topic that has great interest. When this is the case, we can do it. You could also guide it yourself if you feel excited.\xa0
\n\nAnd is there a learning curve, @Noemi ? Yes, for me personally very much. Through sharing so openly in a public space among others really gave me confidence to be vulnerable and fully present. Also for many others I feel sharing with each other has this effect. During some of my meetings I really saw people transform, releasing some of the doubts and limiting beliefs they had about themselves! Truly magical to be there when that happens! Moments I have very exciting and warm memories of.\xa0
\n\nSo let me summarize my experiences:\xa0\xa0
\n\nSharing from personal experiences - yet not getting caught up into the story. The aim is to gain clarity to let go of stories and have space te create the new.\xa0
Circles work well around certain (loaded) theme\'s and communities who work/ life together with a clear invitation.\xa0
Listening from the heart, listening from beyond the personal perspective (not taking anything personal)
Everything that pops up from a genuine sharing is welcome, even if it\'s off topic. What\'s alive here and now is relevant, provided it serves the conversation & transformation of the whole (including the individual).\xa0
I have never been part of such a group with such speedy process of opening up - even when deep conversations arise, we had been traversing a sort of coolness, then sociality, then friendliness, and more and more into deeper discussions. That stood for both personal and professional contexts; for both one on one conversations and group conversations.\xa0How do you go through this curve collectively, and\xa0so quickly, is probably really an art.
\n\nAre we talking one day workshops?
\n\nFamiliar faces or strangers?
\n\nAnd how large a group is optimal?
\n\nThanks @ewoudvenema for sharing so generously.
', u'post_id': 6401, u'date': u'2017-06-15 06:26:00'}, {u'user_id': 200, u'title': u'Parker Palmer; circles of trust', u'comment_id': 17038, u'content': u'Delighted to find that you @gehan have read and appreciated "A Hidden Wholeness" too! I would add my strong recommendation
Thanks @ewoudvenema,\xa0
\n\nI\'ve also found that creating the spaces for conversations willing to push the normal boundaries of politeness or superficiality can be tremendously transformative. I\'m curious as to whether you were referencing a particular approach - such as Parker Palmers beautiful book A Hidden Wholeness. I find it particularly helpful the way he describes these kinds of spaces as counter-cultural. My own learning the hard way suggests that it takes a particular kind of noticing and differentiation of norms to create and preserve these kind of spaces.\xa0
\n\ng
', u'post_id': 6401, u'date': u'2017-06-14 10:57:14'}, {u'user_id': 8, u'title': u'Mood, Time, PLace, Energy', u'comment_id': 9251, u'content': u"Thanks for sharing this Ewoud. I'd love to come to one of these circles and you are very welcome to host them at the homebase in Brussels if you like.
\n\nA few times I have been lucky enough to be in this kind of conversation where there was flow. I've always assumed that they happen serendipitously when the stars align somehow- so many different things that are there at the same time. The mood, the sense of being there in a kind of timeless state, the conversation happening for its own sake and not tied to any kind of agenda. Kind of like wandering aimlessly around a beautiful\xa0forest...
", u'post_id': 6401, u'date': u'2017-06-13 18:30:47'}, {u'user_id': 3, u'title': u'We have our third and final fellow!', u'comment_id': 33320, u'content': u'\n\nWith this we close the applications for curating OpenVillage Festival.
\n\nWelcome to Gehan, Winnie and Woodbine <3
\n\nYou can follow their work building a festival program and engaging networks and other participants,\xa0here.
', u'post_id': 6410, u'date': u'2017-07-14 10:10:38'}, {u'user_id': 3, u'title': u'Received with thanks,', u'comment_id': 33342, u'content': u'Big up @Rachel , it was a pleasure <3
\n\nWill check the links, then I\'ll send you the text for Meet the Edgeryder and you can email over the pics (yourself + any activity relevant to the workshop) to me and\xa0Winnie, so we dont duplicate.
\n\nYay.
', u'post_id': 863, u'date': u'2017-07-13 13:18:25'}, {u'user_id': 3704, u'title': u'more', u'comment_id': 33341, u'content': u'thanks for the nice chat today.
\n\ndid I already send you the art link: \xa0http://www.genomicintegrity.org/home/art-call-works
\n\nor the link to the water data:
\n\nlast years:\xa0http://www.plagespropres.ch/micro.html
\n\nthis years: (still being collected! )\xa0https://kc.kobotoolbox.org/hammerdirt/forms/Microbio_2017/view-data
\n\n??
\n\nbye for now!
', u'post_id': 863, u'date': u'2017-07-13 12:08:29'}, {u'user_id': 3704, u'title': u'super', u'comment_id': 20399, u'content': u'sounds like very good synergies are possible, @Winnie!
\n\nI also thought it might be good to look at how others define citizen science recently... \xa0Here is one link full of links:\xa0http://www.instructables.com/id/A-Scientists-Guide-to-Citizen-Science/
\n\nHappy Summer!!
', u'post_id': 863, u'date': u'2017-06-22 06:05:40'}, {u'user_id': 3, u'title': u'+1 for DNA damage test workshop', u'comment_id': 17617, u'content': u"Winnie was telling me that this is\xa0accesible for non-experts and so I think it could be the best use of everyone's time. For at least two reasons:
\n\nHi @Rachel , nice to read your ideas!
\n\nI think a micronucleus workshop would be cool :-). Off the top of my head in ReaGent we have a binocular lab microscope, some Foldscopes and\xa0some variations of this model (both with bought lenses and self-made ones). Plenty of glassware & staining products as well. What would you need exactly for the\xa0workshop?
\n\nWe can also do a microbial analysis combined with the fly fishing demo by @albertorey . We also have the equipment and might as well when we are at a river!
\n\nAnother proposal\xa0by @Nabeel_p was also related to public engagement and communicating science through art. How could be combine these insights?
', u'post_id': 863, u'date': u'2017-06-14 14:34:48'}, {u'user_id': 3704, u'title': u'interesting', u'comment_id': 12391, u'content': u'thanks! \xa0apparently an acoustic based sensor that recognises running water sounds is the basis for the water stewardship plan (non-evil IoT!
so many projects and ideas out there - it is implementation that is always the biggest challenge imho!
', u'post_id': 863, u'date': u'2017-06-22 06:03:45'}, {u'user_id': 8, u'title': u'OpenDroplet and non-evil iot for water stewardship', u'comment_id': 11715, u'content': u'Hi and welcome Rachel
\n\nNot sure what she is up to these days, but\xa0@iamkat has been working with non-evil\xa0IOT for water stewardship\xa0and proposed a session for a different edgeryders community event here....
', u'post_id': 863, u'date': u'2017-06-14 08:08:37'}, {u'user_id': 3, u'title': u'Prevention and awareness raising as care', u'comment_id': 9415, u'content': u'@Rachel a warm welcome on board!\xa0I\'m Noemi, one of the early days members and involved in building the program for OpenVillage.. I\'m passionate about bringing different communities and professional knowledge into a space where more people\xa0from outside the core teams and disciplines can make a contribution. Even by becoming more aware of citizen science projects, and passing on the word. They can make for activities in a system which enables care - Ezio Manzini wrote about care as socio-technical innovation here, you might enjoy the read if you like to dig into theoretical frameworks for the work we\'ve been doing with the community.
\n\nI liked your call for artistic depictions of "molecular dance" (!) and wondering if the works were exhibited somewhere? Same with the water sampling data? What have you found are good ways to bring the work and insights outside for a wider involvement where people can take action? (cc @albertorey )
\n\nFor the micronucleus workshop\xa0@WinniPoncelet is probably the one\xa0to help out, but you know this already
Also, dont forget to register here so you get updates and learn about other sessions in the runup to october!
', u'post_id': 863, u'date': u'2017-06-14 07:31:00'}, {u'user_id': 3362, u'title': u'Thanks, added', u'comment_id': 33385, u'content': u'Fantastic, thanks!\xa0I added the notes in pdf format\xa0to the wiki. You can also add things/make edits\xa0to the wiki yourself any time.
', u'post_id': 6412, u'date': u'2017-07-13 09:49:57'}, {u'user_id': 3586, u'title': u'notes of MIT course By Prof Christopher Love - Koch institute ', u'comment_id': 20010, u'content': u'By\xa0Prof\xa0Christopher Love -\xa0Koch institute at MIT
\n\nFocus on protein therapeutics manufacturing\xa0using recombinant DNA technology.
\n\nWeek 1
\n\nWhat is a biologic drug?
\n\nMulti billion dollar industry
\n\n\xa0
First test with penicillin:\xa0
\n\nlow yield to high yield penicillin (over 1000 fold increase)
\n\n=> penicillin is protective measure of mold => stressing the mold will lead to higher production of defence?
\n\ndiphtheria first antiserum\xa0
\n\nHe found that by heating and inactivating the bacterial toxin that caused diphtheria, and injecting it into guinea pigs,
\n\nthe animals were immune to lethal doses of the toxin.
\n\nBio-manufacturing to Deliver High-quality Biologics
\n\nWeek 2
\n\nConventional drugs vs recombinant biologics
\n\nsize difference analogy marble and football\xa0
\n\nIn red the recombinant biologics in top 10 list
\n\nSmall molecules are easier to produce by chemical synthesis
\n\nmimic compound or block pathway for example ibuprofen, blocking inflammatory\xa0reactions.\xa0
Due to the small molecule it can bind at a lot of other sites, creating side effects and unintended reactions. This is the reason of large scale failure in first round testing\xa0
\n\nBiologics ar impossible to chemical synthesis, they are grown. less side-effects thanks to hyper specific shape
\n\nin order to work well => drug needs to attach to:
\n\nthey need to be exact and precise to activate a function
\n\n\xa0
How larger the molecule, the easier something can go wrong (such as oxidation or substitution)
\n\npossible problem: aggregation\xa0
\n\n=> clustering of molecules, can lead to allergic reactions\xa0
\n\nBetter filtration techniques are a solution for this problem
\n\nSmall molecules are often given in pill form, the acidity changes the pill to the active ingredient. If a biologics would be used the same way, they would be destroyed\xa0- intravenous, intramuscular, subcutaneous injection or inhalation\xa0
\n\nEnzymatic: example insulin
\n\nspecial targeting: inhibit normal biological function
\n\nProtein vaccines: hepatitis B, influenza
\n\n2.2 introduction to amino acids
\n\n3D form of proteins = what is does and how
\n\nPrimary structure: sequence of amino acids
\n\nSecondary: A-helix and B-sheets
the alfa helix support itself by hydrogen bonding between the carboxyl and the amino group.
\n\nTertiary structure: interactions among all atoms in 3D space (cysteine covalent\xa0bonding of S in insulin)
Tertiary structure, how everything influence the position between other molecules including ionic bonds (charges), \xa0hydrogene bonds, hydrophobic\xa0
\n\nquaternary structure
\n\ninsuline is stored as a hexamer but activa as a monomer
\n\nInsuline has a tendency to clog together when it is released from hexamer,\xa0
\n\ninsuline is engineered to prevent this
\n\n2.4 Post Translational Modifications (PTM)
\n\nPTM can be a cause of concern: toxic variables\xa0
\n\nWell, idealism is the best default I think
Thanks for sharing your views on this. Not opening up data right away is a compromise for sure, one that I do not particularly like, but\xa0I can see reasons. Maybe these\xa0are wrong,\xa0I have no answers.
\n\nWe have not really produced data ourselves yet. Looking forward to when we do and at that point, the team should make the call together. Then it is a conscious and collective decision.
', u'post_id': 6412, u'date': u'2017-06-15 20:57:20'}, {u'user_id': 3704, u'title': u'risk vs honor', u'comment_id': 16714, u'content': u'I think the diybio code of ethics has transparency as its first principal\xa0for a very good reason - it gives a moral high ground that I think can override\xa0such questions of risk @WinniePoncelet, especially when you consider those\xa0options for cc, so open stays forever open and non-profit (thanks for pointing this out, @Alberto !)!\xa0
\n\nTo me, the worst is when an idea is squashed because others decide to protect it for their own profit\xa0- but if it is all in the open to start, we should all benefit. \xa0
\n\nIdealistic? \xa0perhaps... \xa0
On your point 2: the goal is an open source production protocol, mainly for economical reasons.\xa0Though those reasons are \'how one will use the protocol\'. We can all agree on the protocol as a goal, what happens with it afterwards is up to the user. In this stage, it is desirable that the way we get there does not jeopardize\xa0the use some of the team members have in mind (or at least minimally).
\n\nCheap insulin is one of the\xa0reasons, but a precedent for more of this kind of research is also a reason, as this could decrease the cost of many more medicines. We can only guess, but I doubt the lesson Novartis would draw is "we need to do more open research"\xa0after they pick\xa0up half-finished open knowledge and successfully turn it into a product or profit. From releasing a somewhat finished protocol into the world, they might still not take that message away, but more citizen researchers might be inclined to, and keep the effort going.\xa0It becomes an optimization problem to balance\xa0short term and long term economic benefits, taking the strategy to get there into account.
\n\nThe comparison of the dynamics in\xa0software is fair, but that is not to say that there is not a more favorable outcome. The stakes are also higher when considering medicine. The difference between having or not having a piece of software is not death.
\n\nOn 3: agreed to an extent. There is a lot of wickedness in the biotech industry. Research is very slow and expensive, almost as extreme as it gets. The dynamics do change at these extremes, I think, and that asks for a different strategy. To break through, accumulating small wins in an iterative way might not be ideal.\xa0Reaching a particular benchmark that actually matters big time (eg. the first open source production protocol for insulin) perhaps would be.
\n\nVolunteer time can drastically undercut the cost, and make this type of research more efficient than what a Novartis could hope for. We already seeing signs of that in the DIYbio movement. But\xa0we are still learning how to leverage the\xa0advantage. Hardware, software and wetware are definitely enabling us at this point, but are also still developing. Hopefully these things are bringing us to a tipping point, quicklier than the large companies are.
\n\nI think this is still a learning phase, where there are vulnerabilities\xa0on several fronts. Taking the least risky route\xa0wherever we can, seems reasonable.
', u'post_id': 6412, u'date': u'2017-06-15 11:40:00'}, {u'user_id': 4, u'title': u'Messy topic, but some conventional wisdom is emerging', u'comment_id': 12671, u'content': u'As @WinniePoncelet knows, I am a bit of an open data fanboy. \xa0Four thoughts here:
\n\nI\'d love to help with your data strategy. OpenCare\'s works like this.\xa0
', u'post_id': 6412, u'date': u'2017-06-15 10:14:45'}, {u'user_id': 3362, u'title': u'Re: open data', u'comment_id': 11937, u'content': u'That\'s a valid point @Rachel . Although I am a big fan of documentation, I have personally not given it too much thought for OI. Partly because the group in Oakland took the approach of not having an open and rolling documentation repository. Partly because it seemed like too big an effort for now, when\xa0we are already struggling with managing all the information we do and don\'t have.
\n\nI am also reminded of an interesting aspect of openness. A researcher I know, has a huge dataset on barefoot walking by indigenous communities. The Nikes of this world would pay big cash to have it. She believes in open source, however, opening up the dataset would mean only the Nikes could really exploit the data,\xa0thanks\xa0to their size. Smaller companies can\'t do much with the\xa0data (they don\'t have eg. the $10,000 3D printer for it) and the indigenous communities can\'t either. There is skewness in the situation: a huge relative difference in resources, a huge financial incentive and no community of peers that is in a position to contribute to the commons. For all good measure, opening up the data would be\xa0closer to a transaction (a gift, even).
\n\nThe same factors are at play\xa0for Open Insulin. If at one point, an experiment proves promising, a biotech company could take it from there and easily be faster. The peers (like the Belgium group) who want to contribute, can contribute though, but by getting more closely involved. At the end everything can be released, and hopefully this will shift some of the factors at play. Paving the way for a new way of protein engineering\xa0is also a goal of Open Insulin.
\n\nNot sure if there\'s good answers, I\'d love to discuss this more.
', u'post_id': 6412, u'date': u'2017-06-15 08:05:00'}, {u'user_id': 3704, u'title': u'open data', u'comment_id': 10027, u'content': u'There is a debate about what really constitutes \'open\' research still, certainly. \xa0@WinniePoncelet \xa0The response to the FAQ question \'where is the data?\' as \'It will be released when the time is there. We are still in the research phase.\' could be looked upon with askance by many... \xa0Most Hackuarium projects are not intensively getting all expts in progress\xa0into wiki pages, but there are definitely some that try to just get everything down to document as they go, for instance. \xa0(not worrying about being polished is key for that - the\xa0assumption is that\xa0having the \'work in progress\' notice means that someone may help for this process eventually... ) I am still a bit agnostic, even though I encourage documentation asap always, and wonder how you personally feel about this.
\n\nStarting a European Open Insulin project is awesome, btw!
', u'post_id': 6412, u'date': u'2017-06-15 06:58:38'}, {u'user_id': 3674, u'title': u'Thanks! ', u'comment_id': 33344, u'content': u'Thanks!
Option 1 for me. But they are all nice.
', u'post_id': 33288, u'date': u'2017-07-11 14:32:24'}, {u'user_id': 3367, u'title': u'Hey, thanks for the comments and looking forward ', u'comment_id': 33213, u'content': u'Hey, thanks for the comments and looking forward to this conversation developing. One of the things we are going to do in the next week or so is to work to develop the main ideas we hope this title expresses. So I will attempt to do so here, but more in-depth work will come out. I think the points that are raised are very valid and I think fundamental to our collective development of what it would mean to live and work together as the original title described.
\n\nBy communism, we are not referring to the ideals of communists, most of whom were essentially socialists vying for state power to then institute some utopian form of communism. So that communism was only possible after some transition period, and the accumulation of power. Both of which are false assumptions, proven over and over again by history. Be it Ethiopia, USSR, Cuba, or China, these leaders took power by whatever means, in an attempt to take over "means of production". But the problem is not who owns the means, it is the means themselves. What we mean by "communism" is the ancient form of communism. The form of communism that arises in close knit neighborhoods, the form that Occupy, the Squares movement, and historically, the Spanish anarchists all exemplified. It is the development of common needs and the sharing of resources and property to meet those ends. I would argue that communism is our natural form of life if we consider the indigenous ways of life as well as the natural trend towards communism that occurs after natural disasters. And so when we say "living communism" it is a nod to this way of life, having nothing to do with state power and the crimes committed in its name.
\n\nAs for the strategic use of rhetoric, I absolutely agree that there is a strategy around that selection. When we argue for "spreading anarchy", it is not necessarily the "Black Bloc" that we are supporting. Nor is it the adolescent who wants to do "whatever they want" mentality of some so called anarchists. Rather what we are arguing is that anarchy as a form of organizing is fundamental to how we live. OpenCare is working to highlight decentralized groups that self-organized, most without any state support and that will aim to provide their services or goods for minimal costs, separated from the capitalist model. I would argue that this is in form "anarchist" in that there is autonomy within groups to create their own rules, there is a lack of hierarchical structure, and the goods produced are for the commons.
\n\nInterestingly, the terms "communism" and "anarchy" have both been painted so negatively by liberalism, which I think is even more potent at this juncture. Here in the US, there is a feeling of complete polarization. It is becoming impossible to be "middle of the road". And from what we see in the UK elections, it seems that people are tired of liberalism\'s vague "hopes" for freedom and equality. That people can say extreme ideas and those ideas can begin to be taken seriously. Unfortunately this works for both sides, as we see fascist language becoming more commonplace. But inevitably, I see this as a result of capitalism, not as a reaction to the left. In fact, because the left here in the US is so weak (mainly because they have been trying to "compromise" with capital), they have no power to struggle against the far right. I would argue that this is a time to recapture our language and our ideas. We are not fighting for the autonomy of Silicon Valley or the global development ideas of the World Bank. We are fighting for a new vision of the world, and I don\'t see how that vision of the world is compatible with capitalism. If we believe that, then we must openly admit that we are calling for a revolutionary way of living. And to push our vision forward, we must re-appropriate the words. So maybe using strong language will push some people away. But as has been shown in struggles around the world, it has the power to attract even more. Its a gamble, but so is wanting a different way of life.
', u'post_id': 6478, u'date': u'2017-07-11 22:09:52'}, {u'user_id': 8, u'title': u'Communism has a painful ring to it', u'comment_id': 14634, u'content': u'Hi guys, tuning in quickly from the road. I\'m looking forward to this and will try to scout for more initiatives.\xa0
\n\nIm curious what you associate communism with?\xa0 Am\xa0partially of Ethiopian descent where it is associated with the red terror"
\n\n"Thousands of men and women were rounded up and executed in the following two years.\xa0Amnesty International\xa0estimates that the death toll could be as high as 500,000.Groups of people were herded into churches that were then burned down, and women were subjected to systematic rape by soldiers.[19]\xa0The\xa0Save the Children Fund\xa0reported that the victims of the Red Terror included not only adults, but 1,000 or more children, mostly aged between eleven and thirteen, whose corpses were left in the streets of Addis Ababa."
\n\nI do not mean to engage in an ideological debate, just to understand what it is you mean and how to articulate it with clarity and exactitude.\xa0
', u'post_id': 6478, u'date': u'2017-07-09 19:50:16'}, {u'user_id': 3, u'title': u'Reflecting on constructive wording for #openvillage..', u'comment_id': 7384, u'content': u'This draws on our email conversation @Woodbinehealth . By being a festival Fellow and curator, your take on working and living well together will shape the narrative of the event.\xa0I\'d like to raise the question of which (essentially ideological)\xa0language is most constructive for what we want to showcase. This is relevant in so far as the formal event theme is concerned, not this call which is your personal voice.
\n\nI am aware that there\xa0is a sort of "in group" deeper understanding of the phrasing "Living communism, spreading anarchy" - think I found the original work here.\xa0
\n\nBut by making a statement about anarchy do we risk alienating some community members?\xa0personally I prefer "collective health autonomy" as\xa0it points more clearly to\xa0community care. \xa0I would argue that it\'s great to\xa0convey the idea of being revolutionary about care, but with a connective layer, the\xa0sense of ecosystem and infrastructure.\xa0I dont think revolutionary = political in the sense of the ideological spectrum though.
\n\nAnyone care to help us find a formalised narrative? Do you have feedback/ advice?\xa0
', u'post_id': 6478, u'date': u'2017-07-09 15:04:20'}, {u'user_id': 8, u'title': u'Ping Yannick', u'comment_id': 7351, u'content': u'Maybe something for you along the lines of what we discussed @Yannick ?
', u'post_id': 6474, u'date': u'2017-07-09 12:43:45'}, {u'user_id': 3, u'title': u'How stories can become sessions?', u'comment_id': 17113, u'content': u'@Woodbinehealth great! the stories I mention above have good insights into the theme - some people manifested interest to present/ work on something at the festival (Bernard at Cosain is in touch with @Gehan already but feel free to piggyback on their conversation). Others havent, and could be nudged into delivering a contribution - in an open conversation too if not in a singular talk - John Coate and Alberto are definitely people to ping to ask for inputs.
', u'post_id': 6409, u'date': u'2017-07-07 12:14:20'}, {u'user_id': 3367, u'title': u'Looks great', u'comment_id': 15829, u'content': u"Hey,
\n\nLike the ideas! \xa0We'll get to work on catching up and thinking about the curation. \xa0
\n\nFrank
", u'post_id': 6409, u'date': u'2017-06-25 20:15:05'}, {u'user_id': 3, u'title': u'Themes..', u'comment_id': 9836, u'content': u'@Damiano you mentioned during a community call that we\'d need a better overview of what the festival can be about.. check the program page\xa0now, click around and advise if it\'s clearer as a work in progress?
\n\nEach theme page should provide more info.. Could use more help though..
', u'post_id': 6409, u'date': u'2017-06-14 15:00:22'}, {u'user_id': 3, u'title': u'"We have no capital, no investors, no shares."', u'comment_id': 7127, u'content': u'For me, seeing you guys at work it\'s been highly rewarding: fairly technical projects requiring hard skills are\xa0crossing over to ask fuller questions re: sustainability whose answers can only become a common resource for those of us struggling with the same.
\n\n@breathinggames the four obstacles lined up above are something to include in your session description I believe - for the discussion after.
', u'post_id': 6459, u'date': u'2017-07-07 09:37:30'}, {u'user_id': 3580, u'title': u'Lab visit', u'comment_id': 26692, u'content': u'Count me in!
', u'post_id': 6467, u'date': u'2017-07-06 15:46:06'}, {u'user_id': 3362, u'title': u'And news about the lab', u'comment_id': 23500, u'content': u"We're visiting the lab where we can do the work on the 2nd of August at 7pm (the professor is on holiday til then).
\n\nWho's up for joining?
", u'post_id': 6467, u'date': u'2017-07-06 13:35:16'}, {u'user_id': 3362, u'title': u'Notes July 5th', u'comment_id': 19814, u'content': u'Notes from yesterday:
\n\n@WinniePoncelet : can\'t make it, but I will see you in Amsterdam Friday =)
', u'post_id': 6467, u'date': u'2017-07-05 12:03:58'}, {u'user_id': 3362, u'title': u'8pm @ Timelab', u'comment_id': 6726, u'content': u'Forgot to add!
', u'post_id': 6467, u'date': u'2017-07-05 12:01:17'}, {u'user_id': 95, u'title': u"@Noemi\xa0 I'm not hugely familiar with the context- ", u'comment_id': 23370, u'content': u'@Noemi\xa0 I\'m not hugely familiar with the context- I think @Gehan was referring to in the context of the Art of Hosting work- but here is an article from the originator of the concept, I believe, Dee Hock: https://thesystemsthinker.com/the-nature-and-creation-of-chaordic-organizations/
\n\nAnd here is a useful page on the P2PF wiki:
\n\nhttp://wiki.p2pfoundation.net/ChaordicOrganizations_-_Characteristics
\n\nQuote: Chaordic organisations are:
\n\n\u2022 Are based on clarity of shared purpose and principles. \u2022 Are self-organizing and self-governing in whole and in part. \u2022 Exist primarily to enable their constituent parts. \u2022 Are powered from the periphery, unified from the core. \u2022 Are durable in purpose and principle, malleable in form and function. \u2022 Equitably distribute power, rights, responsibility and rewards. \u2022 Harmoniously combine cooperation and competition. \u2022 Learn, adapt and innovate in ever expanding cycles. \u2022 Are compatible with the human spirit and the biosphere. \u2022 Liberate and amplify ingenuity, initiative and judgment. \u2022 Are compatible with and foster diversity, complexity and change. \u2022 Constructively utilize and harmonize conflict and paradox. \u2022 Restrain and appropriately embed command and control methods.
\n\nSounds very Edgeryders!
', u'post_id': 6462, u'date': u'2017-07-04 19:46:30'}, {u'user_id': 3613, u'title': u'Yes - both!', u'comment_id': 21670, u'content': u'That\'s it - "identify microclimates\xa0and bottom up organising at the same as distilling policy implications". That is the direction I hope the theme will take us in!
\n\nBigger arenas is another interesting dimension and I\'d hope that by identifying the enabling factors this will be like knowing what\xa0ingredients are needed no matter the size of the pot! Healthy growth for wider impact would be a goal.
\n\nLooking forward to more shared insights on these topics!\xa0
', u'post_id': 6462, u'date': u'2017-07-04 20:16:07'}, {u'user_id': 3, u'title': u'Transitioning from one role to the other', u'comment_id': 19609, u'content': u'Thanks @Gehan for a great synthesis - I understand better where the policy perspective comes into your thinking and the theme overall. I think it was me who skewed it at some point because I thought that we can begin to identify\xa0"microclimates" and bottom up organising\xa0at the same as distilling policy implications. I realise now there is a much slower process of inquiry which can allow us more discrete and meaningful observations. Let me know if i\'m wrong..
\n\nIn your theme, I am most curious about how communities which nurture those enabling conditions can move on to leverage them into bigger arenas (Bernard\'s tales from Galway, or the incredible potential of @Woodbinehealth ), namely\xa0how care collectives can, in time and with due iterations or healthy growth,\xa0become institutions, if that word can be used..\xa0
', u'post_id': 6462, u'date': u'2017-07-04 10:46:02'}, {u'user_id': 3362, u'title': u'Same observations', u'comment_id': 19057, u'content': u'And shifting to the right in practice for us meant\xa0developing sustainable financial models.
\n\nLargely in two ways: commodifying what came out of our own chaos and getting paid to invent new things for other people (creating some chaos in their world).
', u'post_id': 6462, u'date': u'2017-07-06 13:43:11'}, {u'user_id': 3613, u'title': u'yes, and...', u'comment_id': 19042, u'content': u"... what I've taken from it also relates to the point about burn out. The space between chaos and order is what to cultivate to innovate. But we don't what to expend our energy reinventing the wheel. When we have found stuff we want to maintain - shift it a little to the right - find routines and rythms - sustain it. Like a bike - if its working you want to maintain it. You don't want to be designing new components constantly.\xa0
\n\nThis is also a high octane space, it can be fast. We need to enter it to create new and innovative stuff but it is also exhausting.\xa0
\n\nHow does that land?
", u'post_id': 6462, u'date': u'2017-07-06 13:33:00'}, {u'user_id': 3362, u'title': u'Visuals make it clear', u'comment_id': 19020, u'content': u'Thanks for those visuals @Gehan ! Makes it pretty clear. We are constantly in the zone between chaos and order, now transitioning more to the right. But we will keep a piece in that innovation zone, it\'s important not to let all the paint dry. Or it\'s death by boredom for us.
\n\nI\'m a fan of using this framework for something more
', u'post_id': 6462, u'date': u'2017-07-06 11:43:51'}, {u'user_id': 3, u'title': u'Staying there for longer..', u'comment_id': 18597, u'content': u'I wonder if this phase\xa0can\xa0last for long enough that it becomes somewhat a given\xa0and acknowlegded in\xa0the organisational culture - that would make people working on-and-off feel more at ease and able to find a role that is creative and autonomous instead of coping for the larger part
I guess time is of essence, and communicating the best we can.\xa0
\n\nLater on, organisation growth comes with its own (and other) strings attached which can easily compromise out-of-the-box creativity levels. Maybe this is a useful framework to bring about at the session on organisations\'\xa0sustainability, governance.
', u'post_id': 6462, u'date': u'2017-07-06 09:42:13'}, {u'user_id': 3613, u'title': u'working with chaos and order', u'comment_id': 18142, u'content': u'Its an idea I came across through Art of Hosting that I found useful (though other AoH methods made me feel a bit \'spiky\')
\n\n\n\nIt talks about the different qualities of chaos and order. On both sides is death - left of chaos, complete break down - to the right of order death through stagnation. Chaos is creative\xa0but the paint never dries, it\'s impossible to form anything lasting. Order is the about maintaining, ryhthm, routine - it has its place.\xa0The overlap between chaos and order is the most productive space for innovation and emergence. I think its useful because it\'s about considering what\'s needed in any given situation.
', u'post_id': 6462, u'date': u'2017-07-04 19:47:00'}, {u'user_id': 3, u'title': u'"chaordic" ways of working', u'comment_id': 18134, u'content': u'Nice way of putting it.. I assume it refers to the non-linearity and coping with complexity which Gehan mentions. Feel free to expand on that - it will help those of us primarily tasked with infusing some sense of orderly process around here
Great summary @Gehan of the work so far in all its human complexity: I\'m often reminded of the phrase of encouragement used in 12-step addiction fellowships: \'progress, not perfection\'.
\n\nAnd I remember that conversation about the \'poli-words\', and also of the need to capture insights, spontaneous sharings and maps of meaning that come up in informal contexts, in conversations among friends, that can often be ephemeral if not documented: I recall we had a good conversation after an Edgeryders community call some weeks ago where we found the words to express things better after the call had ended- I remember a great riff you had about \'chaordic\' ways of working.
', u'post_id': 6462, u'date': u'2017-07-03 16:54:31'}, {u'user_id': 200, u'title': u'Good opening!', u'comment_id': 10437, u'content': u'Thank you @gehan for this stimulating reflection, and for the mentions. I identify with the great challenge of knowing how to orient ourselves and act in the larger picture, beyond what we are already doing in our own smaller contexts. But even just describing the threads helps us to recognise our belonging to the same fabric, and to weave more connections over time.
', u'post_id': 6462, u'date': u'2017-07-03 09:05:14'}, {u'user_id': 3367, u'title': u'Great ways of using systems', u'comment_id': 26046, u'content': u'Thanks for this post! \xa0Just getting around to reading it and impressed with the scope and vision. \xa0The idea of the "crisis cafe" is very similar to what we have been thinking about in Woodbine. \xa0How can we begin to view mental health \xa0issues not as a failure of the individual necesitating treatment but rather as a symptom of an unmet need. \xa0And then using our spaces and fostering the manipulation of other resources to meet that need. \xa0Keep up the great work and looking forward to hearing how it progresses. \xa0
', u'post_id': 757, u'date': u'2017-07-03 16:28:14'}, {u'user_id': 3374, u'title': u'WOW!', u'comment_id': 24214, u'content': u'Wow! @Noemi told me to check this out almost 7 months ago and for some reason I completely spaced. This sounds fantastic! I would love to hear any updates you have since your original post.\xa0
', u'post_id': 757, u'date': u'2017-05-02 14:37:16'}, {u'user_id': 3, u'title': u'Sharing experiences between Ireland, Greece and other places', u'comment_id': 21632, u'content': u'@MAZI I figured you might want to read this.\xa0Thom, @Bernard @Teresa_Nilan and their team are incredibly committed to this project and I see you guys comparing notes.
\n\nFor reference, MAZI\'s story also makes a\xa0compelling case for peer support groups and they run these gatherings in both Athens and Thessaloniki. It seems to me they also have had some successes with funding coming in.
', u'post_id': 757, u'date': u'2016-10-03 16:13:00'}, {u'user_id': 4, u'title': u'Unlikely allies', u'comment_id': 15044, u'content': u'So, what we have here is:
\n\nIt is paradoxical and completely logical at once! I guess, in its own way, this is fairly typical of the idiosyncratic paths taken by communities of care. You work with the tools you find lying around, and they might be highly specific of your place and time.\xa0
\n\nECOC processes have one thing going for them: they do encourage everyone in the bidding city to think as a local community, like a piece of a local system. Maybe it made it more natural for a group interested in mental health issues and an arts museum to form an alliance.\xa0
', u'post_id': 757, u'date': u'2016-09-23 11:01:43'}, {u'user_id': 3, u'title': u'"mutual support is amongst the most therapeutic of acts"', u'comment_id': 6901, u'content': u"This. Over and over again.\xa0
\n\nI'm an avid supporter of Cosain and look forward to returning to Galway soon!\xa0<3
", u'post_id': 757, u'date': u'2016-09-20 16:26:32'}, {u'user_id': 3400, u'title': u'GitHub is NOT open source, use GitLab ', u'comment_id': 10455, u'content': u'The intention is good, but GitHub is not an open source tool. I suggest to use GitLab, which includes an issue management tool. GitLab also acquired Gitter which is an unlimited equivalent of Slack.
\n\nDifferent website exist that give free/libre and open source alternatives to proprietary code, such as FramaSoft.
', u'post_id': 868, u'date': u'2017-07-03 10:01:05'}, {u'user_id': 3323, u'title': u'Missed this somehow', u'comment_id': 16270, u'content': u'But, in light of the collaboration with Anders this week, @Alberto , this seems like it would be a really cool dataset to compare with Open Care. Similar themes, different structure ---- could be great. Also such a cool initiative! Thanks for sharing @WeMHNurses_Team !
', u'post_id': 551, u'date': u'2017-06-28 09:59:41'}, {u'user_id': 4, u'title': u'Great stuff!', u'comment_id': 9266, u'content': u'Wow, this is really really cool. Have you tried doing ethnography on it? @Amelia what do you think?
', u'post_id': 551, u'date': u'2016-11-03 01:02:27'}, {u'user_id': 3639, u'title': u'Sam, you rock???', u'comment_id': 29088, u'content': u'I am so glad we had that discussion yesterday. you left me so happy and i really was amazed how simple and humble you are to key in with my idea and with your beautiful concept of MP3 players with memory cards , with one hour of spoken word on reproductive health education , with light music carefully selected for their entertainment as well. These Kids in Cameroon especially in Orphanages will love this and t will totally work. i wish to invite all the participants of this community to join us and lets empower young people in orphanages in Cameroon with these MP3 players containing quality and verified information about reproductive health education and menstrual hygiene management, head phones and memory cards. You could join I and Sam in this venture to educate young people.
', u'post_id': 849, u'date': u'2017-06-27 09:42:53'}, {u'user_id': 2551, u'title': u'A few explanations', u'comment_id': 28736, u'content': u'So this concept is pretty flexible and I already had a discussion with @Gentlewest via skype to hear what would make most sense for a "start small initiative". That would probably be about 25-30 mp3 players with small memory cards (128 MB will suffice for up to 8 hours of spoken word audio). The players will run 3-4 hours when new and charged fully (usually have a tiny 70mAh x 3.7V LiPo battery). That will be more than enough for 1-2 lectures + some music for an entertaining and relaxing break.
\n\nEach of the players will be used by a group of 2 students (usually girls, but if somehow possible I would love to include some boys into this as well e.g. some that have younger sisters to look after).
\n\nOne can complement this "intimate lecture" by 1. a short intro for everyone via loudspeaker (also allows for questions to be answered for everyone). 2. A discussion period where the 2 students can ask each other questions and discuss things they did not understand. Then some can be interviewed e.g. in groups of 4 with 1 interviewer recording the discussion in order to have feedback for continuous improvement (I\'d recommend doing 3 of these 4+1 format interviews: 1 with the smartest, 1 with the kids that likely had the most difficulty (and would likely be disruptive in a larger group), and 1 with random pairs). These interviews are not to grade the students but to find where most misunderstandings remain, and where the lecture needs to be improved or go deeper.
\n\nThe other students can have a more regular question & answer lecture. If you visit a group of approximately 50 students, you\'d ideally have 2-4 people to run the hole thing. 1 to do the recorded 4+1 interviews one after the other, and 1 to deliver the interactive lecture.
\n\nAfter the lecture you carefully check if you get all materials (including memory cards) back. Then they need to be charged for about 1 hour each using 5V and a mini-usb cable. One could also do a multi day event if there are enough power supplies there. The power supplies are probably among the most expensive things. ASIN: B00MLTTO6Y will do 4 x 5V USB for 6 EUR as step down from e.g. small a car battery, ASIN: B00K67X8PQ does 1 x 5V step up from e.g. 1-2 AA batteries for approx 1.50 EUR. (By the way these would also allow you to run or charge small USB-LEDs or other USB based items such as phones)
\n\nAny super-old USB phone charger will likely also work fine because the power the mp3 players need is super small (10x less than most phones). Also the small solar panels can charge the battery directly in direct sunlight (just be careful things stay below 40 C).
', u'post_id': 849, u'date': u'2017-06-26 23:10:08'}, {u'user_id': 2551, u'title': u'The "Big Picture"', u'comment_id': 28471, u'content': u'Hey @Gentlewest let me post a very technical picture here which has lots of stuff in there (we will probably not even need half of that). This is most of the hardware I have collected around the general idea already.\xa0 I can explain it all in detail, but probably it is best to discuss what you actually NEED first.
\n\n\n\n( @Matthias can you increase upload limit a tad, my new phone camera spits out 5.2 MB... this cost me 3 attempts and 30 minutes. Also mentioning this because it is still related to the project we discussed in Nepal context ).
\n\nThia here includes many spare parts, a small radio station, a powerful loudspeaker, voice recorders to takes tests and get feedback, etc.
\n\nI like your idea about including music - and I had thought something similar. On Jamendo.com we could get free music without any legal trouble. Because the mp3 players are relatively simple (you can only go forward or backward by one complete track) one could put the lecture before the music in the same track. So they would have to listen to the lecture before they get to the music. This will be some extra work in the beginning but I think you made a good point. It is possible to do ALL KINDS of sound editing in a program called audacity (http://sourceforge.net/projects/audacity/) but I think it would be good to find something more simple.
\n\nAnother thing one could offer are more or less educational stories - e.g. for language courses (e.g. from Librivox.com). But all that is a different topic.
', u'post_id': 849, u'date': u'2017-06-26 10:48:49'}, {u'user_id': 3639, u'title': u'Dear Saeed, i am so humbled and honored to read from you', u'comment_id': 27830, u'content': u'I am so delighted to read from you. I salute you for the effort and initiative to extensive make reproductive health knowledge spread across the world. What a wonderful initiative to do so. If i may add, these MP3 players could be as well be made \xa0exclusively just to carry information od Reproductive health and rights and with some good educational music added to it. Youths will love this and it will actually sell. Instead of making a model that will need solar charging, we could making a small portable device like any other player that takes memory card as well , which is rechargeable.\xa0
\n\nI will love to work out something with you. Lets connect. get in touch at : (+237) 670708533
\n\n:Looking forward to read from you soon.
', u'post_id': 849, u'date': u'2017-06-22 09:43:11'}, {u'user_id': 2551, u'title': u'Distributed teaching ', u'comment_id': 26068, u'content': u'Hi @Gentlewest I have long thought about a concept for more effective teaching with the help of cheap (repairable) mp3 players and small printed cards for illustrations. The original idea behind this is to reach really rural and remote people and provide them with good access to useful information. But to start this I was thinking about which lectures make most sense - and I think you have a very good example of one (I also agree with @saeed.qaisrani ). So I think the wider topic of hygiene & health would be most helpful.
\n\nI have already made a small collection of mp3 players, ear plugs for listening, some spare parts, and solar for charging the batteries. I have started to test them for reliability and easiness to repair and I am hopeful that most will survive many months before they have to be repaired. I think the cost of the audio lecture was 0.001-0.0005 EUR per minute (+ the cost of recording the lecture). The mp3 players cost about 3 EUR but the memory card also cost 1 EUR for 1 GB of storage (which is plenty). Sooo:
\n\n1 Player needs to run for 4000 to 8000 minutes (66.7 hours). A fresh player will have to charge about 15-20 times for that. So that means they have to survive about 3 weeks of one use per day on average. If they survive longer or get repaired cheaply (very possible) then it gets significantly cheaper.
\n\nIf you know what illustrations are needed those could be printed on a robust support (e.g. playing cards or similar). Some of them could also be designed to be copied by hand (e.g. as a memory exercise).
\n\nA couple of advantages:
\n\nyou know what gets taught
kids could be working at the same time, or be at home
less humans in the loop (has some disadvantages, but is perhaps helpful against corruption)
no literacy required
Let me know if you are interested. I have much more thought on that but I really need advice from someone who knows the real problems in Cameroon much better.
\n\nFeel free to get in touch. We can also skype or similar - it may be a bit easier to explain & understand then.
', u'post_id': 849, u'date': u'2017-06-20 11:56:49'}, {u'user_id': 3639, u'title': u'Dear Shakaerjola, i am so glad to read from you', u'comment_id': 24949, u'content': u"Hello, it takes a like minded person to connect and identify with another mind doing same activities to foster development and inspire change. I am so delighted to hear from you and on your positive comments. Actually, my goal here is not to make people feel sorry for Africans, or to paint a dark picture and exagerate facts. My goal here is to let people be aware of issues whose practices has created a negative impact on th lives of Cameroonians and Africans. Till today, our elders think, young people are not qualified to talk about matters of sex education with them. As i pointed out in my article, theis alone makes young people vulnerable to wrong practices \xa0and getting information from doubtful sources to help themselves. We have stories of young girls seeing blood in their private which they, didn't understand it was menstruation, poured plenty of dust and dry ground on their vaginas to stop the blood flow. I am working with a dedicated team of volunteers to extensively spark healthy discussions about reproductive health and menstrual hygiene management. We have organized a series of information events, training workshops and seminars to educate youths on reproductive health and family planning. FGM which is a form of Gender based violence is widely practiced in Cameroon and we are doing \xa0plenty of advocacy to work with traditional leaders to abolish such obnoxious cultural practices that \xa0expose girls and women to violence \xa0and \xa0HIV. I have some reports of activities which i have done in Cameroon.If you are interested, i will be glad to share with you. Here is my email: mbotiji@gmail.com
\n\nI will be glad to connect and discover you more and of course you will be the reason why, i will visit the beautiful country of Albania.
\n\nWith Personal Warm Regards
\n\nEric Mbotiji
\n\nSecretary General ,United Nations Youth Association of Cameroon
\n\nAssessor, Duke of Edinburgh International Awards Cameroon
\n\n\xa0President,Net Impact Professional Chapter Bamenda
\n\n(+237) 670345904/670708533
", u'post_id': 849, u'date': u'2017-06-22 10:07:28'}, {u'user_id': 3681, u'title': u'Undisclosed content ', u'comment_id': 24411, u'content': u'Undisclosed content', u'post_id': 849, u'date': u'2017-05-30 23:05:27'}, {u'user_id': 3639, u'title': u'Hello Dr Saeed', u'comment_id': 21990, u'content': u'Thank you for your encouragements. In fact when i volunteered with the world Bank, which took me to 25 villages in Cameroon to work with community health centers, what i saw grieved me so much in terms of infrstructure, sanitation and equipments. No lights at the clinics and lack of portable drinking water . Patients carry water from natural springs to take their drugs and minor or major surgeries cannot be performed at night due to lack of power supply. All of these, affects the quality of health care delivery. I am currently working on a proposal to help these health units get bore holes and solar enegry to power \xa0up their facilities. Any links, contacts for funding will be of great help.\xa0
\n\n" If you believe that your product or service can attend to a true need, then it is your moral responsibility to sell it" Zig ziglar
\n\nI also salute your work and efforts in the health sector. More grease to your elbows
', u'post_id': 849, u'date': u'2017-06-22 10:14:48'}, {u'user_id': 3682, u'title': u'Sustainable Health development ', u'comment_id': 21127, u'content': u'Dear\xa0Gentlewest, Hi....
\n\nThe motivation of health workers\xa0to deliver services in developing countries has been described as a critical factor in the success of health systems in implementing programmes. How the sociocultural context and affects the values, motivation and actions involved in sexual and reproductive health services is important for policy development and programme planning. With interest in male circumcision\xa0as an HIV prevention option is also necessary, this study explored the perceptions and motivations \xa0involved in sexual and reproductive health services, examining their implications for the possible future roll out of a national programme as well.
\n\nGood efforts, keep it up\xa0
\n\nDr.Saeed Ahmad Qaisrani
', u'post_id': 849, u'date': u'2017-05-30 21:59:17'}, {u'user_id': 3639, u'title': u'we could collaborate and work together for collective good', u'comment_id': 15441, u'content': u'DearNeomi,
\n\nI am really glad you could make out time to read my article on improving access to reproductive health knowledge for adolescent girls in Cameroon. I will definitely work with together and create social positive impact. I read your story and it was so inspirational. I salute you for your efforts and work. More grease to your elbows
', u'post_id': 849, u'date': u'2017-05-24 22:28:21'}, {u'user_id': 3639, u'title': u'Hello Noemi,', u'comment_id': 11273, u'content': u'I think, i could easily work with finr artists to talk about reproductive health and other issues of rpime concern to young people.
\n\nThank you
', u'post_id': 849, u'date': u'2017-06-22 10:16:58'}, {u'user_id': 3, u'title': u'Art as a medium? Example from South Africa', u'comment_id': 8524, u'content': u'@Gentlewest hello and nice to meet you, I don\'t think I\'ve met anyone from Cameroon until now. Small world, this Internet thing
How do you see the change in behavior happening? Is anybody speaking publicly about this?
\n\nOne example of intervention\xa0which you might find useful, although i don\'t know your background, is throuhg art. @Nabeel_p \xa0is working on awareness raising for public health issues and sets\xa0up large public art to get the message across. Some of us\xa0found it inspiring - have a look here? Nabeel do you see something like that tailored for reproductive health?\xa0
\n\nAlso, guys: how much exposure of taboo is taboo?
', u'post_id': 849, u'date': u'2017-05-24 20:26:16'}, {u'user_id': 3362, u'title': u'Global Call notes June 26th', u'comment_id': 24242, u'content': u'I\'ve added notes from the call this morning to the document in the Drive.
\n\nCliffs: CCL is making progress with the yeast strain. BioFoundry is testing 9 different plasmids in the coming weeks.
', u'post_id': 6258, u'date': u'2017-06-26 08:29:18'}, {u'user_id': 3362, u'title': u'Global Call notes June 12th', u'comment_id': 20702, u'content': u'I\'ve added notes from the call this morning to the document in the Drive.
\n\nCliffs: the plasmids will arrive when customs feel like it; stressing the need for a more structured collaboration, both locally and globally.
', u'post_id': 6258, u'date': u'2017-06-12 13:40:26'}, {u'user_id': 3362, u'title': u'Notes Open Insulin Global calls', u'comment_id': 16665, u'content': u'For keeping an overview, I decided to bundle the notes from the fortnightly calls we have with people from BioFoundry and Counter Culture Labs on Monday mornings (9 am CET).
\n\nYou can find it in the Drive here.
\n\nAnyone is welcome to call in, the next one is on June 12th.
', u'post_id': 6258, u'date': u'2017-06-01 10:31:01'}, {u'user_id': 3362, u'title': u'Welcome on board @mboto and @Massimiliano\xa0\n\nIn this group ', u'comment_id': 7400, u'content': u'Welcome on board @mboto and @Massimiliano\xa0
\n\nIn this group you\'ll find the discussion and documentation for Open Insulin.\xa0Don\'t hesitate to join the conversation\xa0and share\xa0your thoughts by making your own post or replying.
\n\nLet me know if you need help in navigating the platform. You can find a\xa0User Manual for the platform here, in case you need it.
', u'post_id': 6258, u'date': u'2017-04-20 10:04:58'}, {u'user_id': 4, u'title': u'No reply?', u'comment_id': 28967, u'content': u'Also ping @Pavlos . And @Stephan_ISM , when you are logged in you should have the means to contact @OrangeHouse . Go to their profile, for example clicking on their avatar (https://edgeryders.eu/en/users/orangehouse ). You will see a "contact" tab. Click it, then you can write them a message, which will be delivered by email (for privacy reasons, the Edgeryders platform never shares email addresses). If they reply, you will get a regular email from them, without going to Edgeryders, and at that point you will also have their email address.
', u'post_id': 533, u'date': u'2017-06-26 07:12:24'}, {u'user_id': 3, u'title': u'Making sure they read it', u'comment_id': 28465, u'content': u'@Stephan_ISM welcome to edgeryders, happy you found inspiration in the story.
\n\nIn order to draw attention of the person you\'re addressing I recommend pinging: @ + username , in this case @OrangeHouse .
', u'post_id': 533, u'date': u'2017-06-09 14:14:48'}, {u'user_id': 3695, u'title': u'Undisclosed content ', u'comment_id': 27813, u'content': u'Undisclosed content', u'post_id': 533, u'date': u'2017-06-08 19:14:16'}, {u'user_id': 4, u'title': u'Direct contact is safer! ', u'comment_id': 26956, u'content': u'@ybe, in case @OrangeHouse misses the notification, better contact them through their Edgeryders profile (allows them to be contected without disclosing their email address). GO here:\xa0https://edgeryders.eu/en/users/orangehouse and click on the "Contact" tab.
', u'post_id': 533, u'date': u'2016-10-20 14:09:19'}, {u'user_id': 3403, u'title': u'hello - you might be inetrested in my tour?', u'comment_id': 26042, u'content': u'Hi Orange House,
\n\nI am coming to Greece this winter to offer (free) psychotrauma help in my trauma tour bus. Are you interested in hosting me? I can offer you trauma training, info sessions, trauma best practices and selfhelp, also individual consultations. Please visit my website and contact me if interested. I will be in Athens in january 2017
\n\nybe
', u'post_id': 533, u'date': u'2016-10-19 09:00:11'}, {u'user_id': 3, u'title': u'Perceptions changing', u'comment_id': 23671, u'content': u'@OrangeHouse welcome to Edgeryders, we are honored!
\n\nYour story is providing interesting answers to questions we were posing a few months with @Luisa @Natalia_Skoczylas and others - how to convince people in our close circles, let alone the broader community, to drop the fear of the unknown which is often at the very core of racist or xenophobic reactions. It seems you figured out a good way - by showing things. Then no arguments or fights\xa0needed..
', u'post_id': 533, u'date': u'2016-09-22 07:18:18'}, {u'user_id': 4, u'title': u'Great work!', u'comment_id': 21430, u'content': u'"It is really like a house, not like a social service type of place. "
\n\nWelcome, @OrangeHouse . You capture beautifully the spirit of opencare. And yes, you need salsa teachers and roof gardeners to deal with the, ahem, refugee crisis. And acupuncturists, like @steelweaver , and trauma therapists like @ybe , and actors and poets like @Alex_Levene . I think @Thom_Stewart and the Galway crowd would also enjoy the story...\xa0
\n\nThere seems to be\xa0something going on in the background: you are not being stopped, even though you are definitely in some kind of semi-legal grey area. The story of the Helliniko Metropolitan Community Clinic is similar: no legal entity, but the authorities look the other way (in fact they cooperate, unofficially). There are definitely some humane and brave bureaucrats at work in the Greek public sector!\xa0
', u'post_id': 533, u'date': u'2016-09-18 20:32:51'}, {u'user_id': 3402, u'title': u'Good Job!', u'comment_id': 16513, u'content': u'I\'m happy for this\xa0Orange House! I thing here in Thessaloniki we don\'t have something like\xa0this. A "copy paste" is not possible when we talk about people\xa0but your advices could be very helpful. How can we follow and share your project?
', u'post_id': 533, u'date': u'2016-09-18 18:00:24'}, {u'user_id': 2569, u'title': u'Wonderful story', u'comment_id': 8654, u'content': u"Hi Orangehouse,
\n\nThis sounds like a fantastic project. Congratualtions on your initiative and making it all work out so well.\xa0It's great to hear a positive story where people are learning to integrate and create a new life out of a difficult situation.
\n\nThere are certainly lessons that could be learnt from your experiences. I hope that i can share some of them with the volunteer teams that work in Calais. A project like yours in Calais would be a real start to help allieviate the problems between the local residents and the refugees on the Camp.
\n\nI'd love to learn more about your process and they way you initially reached out to the refugees. How did you get them to trust you and your service? Have you had any scary moments?
\n\nAlex
", u'post_id': 533, u'date': u'2016-09-15 16:28:30'}, {u'user_id': 3704, u'title': u'dit', u'comment_id': 28259, u'content': u"yes, that is how the 'do-it-together' concept is of such great use... \xa0many expertises coming together with shared long term goals. \xa0
\n\nlooking forward!
", u'post_id': 6211, u'date': u'2017-06-25 20:12:49'}, {u'user_id': 3, u'title': u'Different service = different skills needed', u'comment_id': 27488, u'content': u'What can be commodified and what not to maintain the open spirit but also reward the creators - Wordpress or Arduino being really good examples.\xa0Another one, but for open knowledge, is thenounproject.com\xa0where graphic designers who release their products under cc license can earn\xa0from purchases, community subscriptions, and royalties.
\n\nWith "delivering" a science based service i.e. workshops in Winnie\'s example - I find the issue of skills for delivery relevant: I imagine it\'s not common that people who excel at doing the hard core research also excel at packaging it or relying on soft skills to take it out into the world. Similar in other domains.. same with building and artifact vs making the sale.
', u'post_id': 6211, u'date': u'2017-06-24 09:11:22'}, {u'user_id': 3704, u'title': u'challenge!', u'comment_id': 27408, u'content': u'yes, commodities sell...
\n\noutside that - there are\xa0many hurdles for the cheek cell chip, to look at DNA damage by two methods, but maybe we have ideas to surmount some of them already...
\n\nin one case, the fluor detection problem (which we would like to avoid), the challenge is simultaneously being addressed through testing of a DIY method for fluor detection (in context of Foldscopes), along with trials of less toxic dyes that might reveal the not only \'micronuclei\' but \'comet tails\'...\xa0
\n\nthe actual item - the \'chip\' - with microcontroller links and electrodes for the e-phoresis step for the comets - is of course quite a hurdle, but we hope it should work...
\n\nMaking sure truly quantative methods are used by people is another huge challenge, particularly given human reporting bias. \xa0We think for workshops,\xa0working in pairs, with each partner counting the cells of the other, might help reduce this... \xa0but, people are always people\xa0\xa0- and if the Foldscopes work, people may really be able to do this outside of a workshop/biohacklab setting..
finally the data correlations, annotations, etc will be a challenge, but use of open python\xa0with the kobotool box for our water analyses now may help lead the way to make it easier for the cheek cell results (base-lines and \'tests\')...
\n\nciao for now!
\n\nRachel
', u'post_id': 6211, u'date': u'2017-06-19 18:58:00'}, {u'user_id': 3362, u'title': u'Knowledge commodities', u'comment_id': 27223, u'content': u'Those are valid points. I can definitely testify to the commodification idea, we do it with workshops. These fun and informative sessions are \'consumable\' for a broad audience. We commodifiy\xa0the experience, not the knowledge: we make the manual freely available online, people can do it at home or in different labs if they want to.
\n\nI wonder: is there a more widespread tendency of commodification in this "layer on top of knowledge"? Experience, curation, translation, ... These things are becoming more and more valuable with exploding quantities of information and all the inefficiencies it brings with it.
\n\nWhat are the hurdles you see for the cheek cell chip?
', u'post_id': 6211, u'date': u'2017-06-19 08:44:22'}, {u'user_id': 3704, u'title': u'knowledge and objects', u'comment_id': 26663, u'content': u"just one thought:
\n\ncommodification is a two edged sword\xa0- people like objects, yet marketing lies and easy access don't necessarily reflect the actual cost to society of certain items (\xe0 la story of stuff). \xa0
\n\nPlus, it is so much nicer to actually make (or fix!) something oneself... \xa0
\n\nOne nice compromise is to make designs reflecting new knowledge fully open source, so anyone could make it themselves easily, but also to provide an easy access for those who just want the thing... \xa0(and also\xa0provide a fundraising opportunity for those who generated the output\xa0and can readily\xa0make the thing) We are thinking about doing this\xa0in terms of the 'cheek cell chip' idea for citizen science (looking into what leads to DNA damage in cells...).
\n\nHaving something concrete provides a focus for community members, that is for sure...
", u'post_id': 6211, u'date': u'2017-06-17 07:43:11'}, {u'user_id': 3362, u'title': u'Reflections', u'comment_id': 23979, u'content': u"Some thoughts have come to mind while synthesizing ideas and going through the stories on the platform again. (PS I've cleaned up\xa0the Open science and technologies channel a bit by untagging the projects that have no connection at all). Writing thoughts down for future reference as I rework the original text here with more concrete info, I admit they are\xa0kind of vague still.
\n\nCurious to hear people's thoughts!
", u'post_id': 6211, u'date': u'2017-04-27 14:49:24'}, {u'user_id': 3362, u'title': u'Helpful', u'comment_id': 22026, u'content': u'This was helpful, thanks
Hey\xa0You
How do you feel about shaping your theme as a specific call for input and participation directed towards peers, e.g. people running the projects you mention above?\xa0
\n\nThe first thing is to have the "big" question: Which financially sustainable models are different open source and citizen science initiatives using to run shared community spaces and labs?\xa0
The second thing is to have a clear goal for what you want to get out of your and others\' investment of time and effort in "your" part of the OpenVillage festival. If the event has been great, what would have happened by the end of it for you? Wild guess- you would have a number of tried-and-tested models that you could experiment with. Possibly having gotten help on developing your own project in peer-to-peer project clinic? Maybe having met others who\'s skills you could use, or who could use yours? You get the picture
3. The third thing is to have a clear ask of people whom you wish to engage.\xa0What do you want them to contribute...and how? Do you want them to do a talk or exhibit at the event? Do you want them to reach out to others whom they know/think can contribute and invite them etc.
\n\n4. Then maybe direct a question to the individuals whom you want to\xa0involve: "How are you doing [what you want to know] in your [open source- or citizen science project]"?\xa0
\n\nEnd with an invitation to do something and explain the steps for how.\xa0
\n\nThis is an example we built for more general outreach for OpenVillage:\xa0https://edgeryders.eu/node/6147
\n\nWhat do you think? feasible within the next two weeks maybe?
', u'post_id': 6211, u'date': u'2017-04-16 19:17:33'}, {u'user_id': 4, u'title': u'It would be the best theme ever ', u'comment_id': 16115, u'content': u"I totally support this. It seems like a great learning opportunities. Also ties nicely into OpenCare 's fairness objectives, and our preoccupation with ethics.
", u'post_id': 6211, u'date': u'2017-03-26 19:48:59'}, {u'user_id': 3362, u'title': u'Community call', u'comment_id': 11828, u'content': u"Thanks for the input! I'm joining the call as well today to discuss\xa0this & more.
", u'post_id': 6211, u'date': u'2017-03-29 12:18:40'}, {u'user_id': 3, u'title': u'Some quick thoughts', u'comment_id': 9472, u'content': u'Hey, timely idea. Nice to see how you tie\xa0ongoing conversations\xa0with\xa0the event.
\n\nPanel - 70 minutes - Space for the Future Of Work - How can communities contribute to defining the future of work, July, 5th - 4.50 pm to 6pmSession description here:\xa0\xa0https://ouisharefestparis2017.sched.com/event/B1da/space-for-the-future-of-work-how-can-communities-contribute-to-defining-the-future-of-work.\xa0It\'s heavily media covered event and unqiue opportunity to get out what we are doing far and wide.
\n\nit would be a good opportunity to present what we are doing in the form of a\xa0succinct booklet to share with participants... I need your help to compile the following information:
\n\nDeadline: July 1. Could we dedicate this week\'s\xa0community call to this @Noemi and @Owen ?
', u'post_id': 6440, u'date': u'2017-06-25 06:22:00'}, {u'user_id': 3362, u'title': u'Went last year', u'comment_id': 15490, u'content': u"We won free tickets last year with a project. It was nice, but wouldn't pay a few hundred euros for it.
\n\nI'm not going this year, although I tried to get in through their new masterclass program. It's\xa0an interesting model: fixed entry price for every masterclass (I think \u20ac150 per person, 20 participants\xa0max.) and all logistics handled by them. The masterclass expert is not paid, but the profits are split 50 50 between Ouishare and the expert. Wonder if it works, and if enough people would participate to make it worthwhile for the expert. A paid event inside a paid event... Not sure.\xa0Ouishare has all the infrastructure in place anyway, so not such a big investment or risk on their part.
", u'post_id': 6440, u'date': u'2017-06-24 07:58:05'}, {u'user_id': 3, u'title': u'Not me,..', u'comment_id': 8498, u'content': u'@Ruxandra and @MANU_BABELE used to go over the past years and they used to be very enthusiastic about it.
\n\n@immaginoteca are you going? Is Volumes involved in any way?
', u'post_id': 6440, u'date': u'2017-06-23 16:42:26'}, {u'user_id': 3, u'title': u'A proposed agenda for the call', u'comment_id': 26939, u'content': u'Hi @Gehan , @WinniePoncelet , @Nadia , @Bernard , and anyone else who would like to join in this Tuesday - I sketched an agenda for what we can approach. Winnie is leading this I guess so feel free to dismiss it altogether if you just want a deep exploration in content.
\n\nFor me, it makes sense that as we add and select\xa0common questions we move them around into a formatted grid as an exercise. Obviously the one on the Program page now is just a placeholder, so we can experiment.
', u'post_id': 6439, u'date': u'2017-06-24 15:33:00'}, {u'user_id': 3, u'title': u'same hangout link', u'comment_id': 25044, u'content': u'Added it in the wiki.
\n\nSee you on Tuesday!
\n\nLet me know if you need something from me in advance..
', u'post_id': 6439, u'date': u'2017-06-24 10:22:04'}, {u'user_id': 3613, u'title': u'hope to be there...', u'comment_id': 24099, u'content': u'...same google hangout link?
', u'post_id': 6439, u'date': u'2017-06-24 10:01:59'}, {u'user_id': 4, u'title': u'... or CEST?', u'comment_id': 22608, u'content': u'During the daylight saving part of the year, most of Western Europe runs on CEST: Central \xa0European Summer Time:\xa0https://en.wikipedia.org/wiki/Central_European_Summer_Time
', u'post_id': 6439, u'date': u'2017-06-24 10:00:14'}, {u'user_id': 3362, u'title': u'CET', u'comment_id': 22089, u'content': u'@Gehan it\'s Central European Time (CET), same time zone we use for the community call.
', u'post_id': 6439, u'date': u'2017-06-24 09:53:00'}, {u'user_id': 3613, u'title': u'time...', u'comment_id': 20692, u'content': u'@Winnie - is it 6.30 CST? I\'m still getting my head around time zones!
', u'post_id': 6439, u'date': u'2017-06-24 09:45:45'}, {u'user_id': 3, u'title': u"Here's a really long list of questions :P", u'comment_id': 15402, u'content': u'https://edgeryders.eu/en/response-questions
\n\nIt is a Drupal view that renders all the questions from all the stories\xa0submitted by community members in opencare. If you remember, when submitting a story one needs to fill in the Story editor with some information about what is is, who do you want to reach etc?\xa0
\n\nI can do Tuesday 6:30 PM this week.
', u'post_id': 6439, u'date': u'2017-06-23 17:19:41'}, {u'user_id': 3613, u'title': u'thanks !', u'comment_id': 8388, u'content': u'Thanks @WinniePoncelet... I\'ll throw things in here as they pop up
http://www.tandfonline.com/doi/full/10.3402/ijch.v72i0.21118
\n\n"Southcentral Foundation\'s Nuka System of Care is based on what customer-owners really want \u2013 a primary focus on building and maintaining relationships."
\n\n"The Nuka System of Care is a departure from \u201cbeneficiaries\u201d or \u201cpatients\u201d serving as mere recipients of tests, diagnoses, and pills. Instead, customer-owners actively share responsibility for the success of the health care system and for their family\'s health and wellness."
', u'post_id': 6441, u'date': u'2017-06-23 20:15:07'}, {u'user_id': 3613, u'title': u'other formats?', u'comment_id': 23963, u'content': u'I was having another chat with a friend and colleague who is heavily involved in attempts to influence drug policy... in relation to the AOL theme, this is a case in point - as you may know - globally drug policy is dominated by a harm reduction approach that is founded on 2-3 experiments that drew conclusions about the addictive nature of heroin based on rats in cages - Bruce Alexander\'s work talks about a different approach - the globalisation of addiction based on a counter experiment nicknamed \'Rat Park\' & there\'s a great graphic novel report of this - perhaps graphic novel format might be an alternative way to gather and diseminate insights?
\n\nAnyway I was reminded of the Museum of the Future that another connection who\'s expertise lies in scenario planning around the future of health...\xa0\xa0he\'s\xa0used MoF\xa0in helping people to imagine the future - I think he did this with young people for a project we were involved in a few years ago. I wondered whether that might make for an interesting session that gets away from simple \'downloading\' good info and purely presentation based formats? I\'m due to meet up with him soon - I\'ll ask him what would be involved...
', u'post_id': 6435, u'date': u'2017-06-22 20:36:00'}, {u'user_id': 3613, u'title': u'...and within themes?', u'comment_id': 20531, u'content': u"Thanks for sharing these thoughts. And thanks Winnie for creating a Wiki to gather the common questions.
\n\nThe person I'd spoken to was referring to ways to connect the sessions in a theme. So perhaps we're looking at cascading tiers - session level questions/theme level questions/common OpenCare questions?
\n\nWhat do you think? She also underlined\xa0the importance of each session being really clear on three things; Purpose, Need & Calling Question/s - and that these are separately and clearly articulated. I thought this was helpful - don't know if its also helpful for others...\xa0
", u'post_id': 6435, u'date': u'2017-06-22 20:23:09'}, {u'user_id': 3362, u'title': u'Connecting questions', u'comment_id': 15233, u'content': u'I\'ve added the thread to discuss it here.
', u'post_id': 6435, u'date': u'2017-06-22 14:43:22'}, {u'user_id': 3362, u'title': u'+1', u'comment_id': 11282, u'content': u"Seconded, and also surprised by the diversity of Bernard's interests. Makes me realise the importance of 'connectors' at the festival and the preparation of it, who can see where different fields find each other.
", u'post_id': 6435, u'date': u'2017-06-22 11:32:07'}, {u'user_id': 3, u'title': u'My takeaway from the call', u'comment_id': 8253, u'content': u"I see a lot of value in sharing where we are with the work and discovering overlaps - drawing each other's attention that someone in the community is already asking similar questions like ours.
\n\nI was also positively surprised about Bernard's process of really digging in the network to find collaborators around homelessness and mental illness - and looking forward to a few paragraphs with what they intend to do so as to latch onto that to invite those working on the same.\xa0
", u'post_id': 6435, u'date': u'2017-06-22 11:18:06'}, {u'user_id': 3362, u'title': u'Science was discussed', u'comment_id': 8319, u'content': u'And drinks were had. Only short updates as not much happened in the last two weeks. We further planned the trip to Amsterdam for the biohackathon and discussed general things.
\n\nWe also asked ourselves: what is the legislation around\xa0genetic engineering in open sea? Could it be unregulated? A first short search on the internet did not deliver any results...
', u'post_id': 6422, u'date': u'2017-06-22 14:55:14'}, {u'user_id': 3, u'title': u'Pictures of the workshop container', u'comment_id': 21938, u'content': u'I found these on the facebook profile you linked to.. so.cool!
\n\n\n\n', u'post_id': 815, u'date': u'2017-06-21 17:06:05'}, {u'user_id': 3, u'title': u'A home with a purpose: compare notes at OpenVillage Fest?', u'comment_id': 20260, u'content': u'Hi @Alan_Murray\xa0I would like to invite you to join us in Brussels later this year (19-21 october) for a fairly intimate community event: It\'s called OpenVillage\xa0and we are coordinating with people who share some of your values, with\xa0projects and lifestyle approaches to giving and receiving better care to support a thriving, good life.
\n\nWe\'ll see attending\xa0others who are doing\xa0coliving\xa0in a connected set of houses, or who did the hippie communes back int he days, or who\xa0run\xa0spaces for getting better health together i.e.\xa0prevention\xa0but dont live there; others are doing mobile instantiations of temporary or permanent home living, again often with\xa0the purpose of providing some form of care: mobile\xa0clinics\xa0i.e. footcare; \xa04x4 firefighter truck flat fully equipped for work and hacking our economic operating systems; \xa0
\n\nSome of the things being discussed at the moment are:
\n\nWould you be interested in joining and helping design an interesting session to compare notes around an issue which interests you?
\n\nAnyone else interested to shape something\xa0like this? Especially if you dont feel like just presenting a project and could use a more thoughtful conversation curated (with care!): @asimong ,\xa0@johncoate , @Michael_Dunn , @Lauren , @Matthias , @Natalia_Skoczylas .
', u'post_id': 815, u'date': u'2017-06-21 09:11:00'}, {u'user_id': 4, u'title': u'Heroes passing through', u'comment_id': 14237, u'content': u'Welcome from me, too @Alan_Murray ! Nadia has been raving about Cregg Castle. And now you have definitely got my own attention: Sin\xe9ad and Shane were (still are) major heroes of mine. \xa0
\n\nLike Noemi, I am deeply involved in The Reef. Hopefully we can exchange.
Is the Montessori school still running? Is it in Cregg?
', u'post_id': 815, u'date': u'2017-02-28 16:16:42'}, {u'user_id': 3, u'title': u'Insights for the Reef', u'comment_id': 6850, u'content': u'Hi @Alan_Murray it\'s a pleasure to meet you and thank you for your thoughts.
\n\nIt seems like you really know what you want from life, which is something not many of us can say even those who value freedom just as much and above all. I have been working on Edgeryders and putting a lot of my energy into building the kind of thriving network you mention but using\xa0an Internet island of people who think and dream alike. Five years later and having had some breakthroughs as we think together about how to live and work meaningfully in the 21st century, it feels it\'s now time to look for a physical home. We call it The Reef and this year is when we will try it, perhaps you are interested in shaping it? It draws from lessons at the unMonastery we ran in South Italy, and from insights like yours above - particularly around wellbeing and what is a healthy way of living with others, communally but with a focus on producing great work at the same time.\xa0There is a lot of metaphoric language still, and we are looking for a model - but I am curious what you learned about how your lifestlye can bring tangible outcomes to the community surrounding you, even beyond personal relationships? Maybe for those participating in your workshops, or the broader ecology around Cregg castle..?
Did you @albertorey ? This is a connection which I believe will be good to explain during your session in october.
', u'post_id': 576, u'date': u'2017-06-21 09:38:38'}, {u'user_id': 3704, u'title': u'fly fishing?', u'comment_id': 21501, u'content': u'I hope you will get the touring exhibition to have a european leg, and come through Lausanne! \xa0To add to the previous comment, by @Natasha_Kabir, all over the world, even here in \'civilised\' Switzerland, rivers need our attention and help!
\n\nI left a comment with a few points this morning on the page with\xa0the documentary, but just to ask one more silly question: was it\xa0actually possible to do any fly-fishing on the Bagmati river?? \xa0(are there many fish to catch?? \xa0are they edible?) \xa0
\n\nI did some flyfishing long ago in the great northwest and Montana, with great pleasure, but\xa0don\'t like to even imagine how the Bagmati river might have smelled in Nepal, let alone think of walking in it with hip-waders (with others swimming and washing alongside!?)...
\n\nThanks again for sharing, and looking forward to further discussions!
', u'post_id': 576, u'date': u'2017-06-15 19:47:14'}, {u'user_id': 3638, u'title': u'Undisclosed content ', u'comment_id': 15859, u'content': u'Undisclosed content', u'post_id': 576, u'date': u'2017-05-13 00:02:42'}, {u'user_id': 3, u'title': u"Where do you feel you've made a difference?", u'comment_id': 8153, u'content': u'Hi! I have a hard time understanding where the key points of your work is - raising awareness to improve environmental and\xa0water quality policies? e.g. water sewage pipes introduced. If so, that is really ambitious, but in the long run.
\n\nIn the meantime it seems you have talked to so many people involve in taking care of the river, and understanding tits vitality for the community, in \xa0practical and traditional terms.
\n\nIf there is one thing that Basmati river project contributed to, what would that be?
', u'post_id': 576, u'date': u'2017-05-11 08:38:56'}, {u'user_id': 3596, u'title': u'Agile kick off', u'comment_id': 14618, u'content': u'Thank you @Costantino!
\n\nAfter this pivot we also had an interesting workshop with \xa0@silviad.ambrosio and @ChiaraFrr on the Agile methodologies that helped us to focus on what we are doing and how to do it.
\n\nIn the following link is an article that go deeper in the details of this activity.
\n\nhttps://edgeryders.eu/en/agile-kick-off-at-wemake
', u'post_id': 866, u'date': u'2017-06-20 10:04:00'}, {u'user_id': 1003, u'title': u'go ResQ', u'comment_id': 9809, u'content': u'cool pivot!\xa0
\n\n', u'post_id': 866, u'date': u'2017-06-14 14:09:00'}, {u'user_id': 3279, u'title': u'is there anymore on this?', u'comment_id': 14518, u'content': u'Hi @wave @Noemi, is there any further development with the T-shirts?. A unique idea. Just wondering\xa0
', u'post_id': 545, u'date': u'2017-06-19 17:50:00'}, {u'user_id': 3, u'title': u'Where did you get the idea?', u'comment_id': 10300, u'content': u'Hi @wave how\u2019s it going? I don\u2019t think we\u2019ve met yet, I\u2019m Noemi one of the Edgeryders community managers. Thanks for taking so much time to read and post here on the platform, even though I\u2019ve been traveling and couldn\u2019t react, definitely catching interest.
\n\nSo what\u2019s your story, how did you become interested in pretty cool ideas like the T shirts?
', u'post_id': 545, u'date': u'2016-10-03 11:22:44'}, {u'user_id': 3586, u'title': u'I am in! ', u'comment_id': 29397, u'content': u'Would be great to join if there is space left!
', u'post_id': 6388, u'date': u'2017-06-18 12:15:14'}, {u'user_id': 3362, u'title': u'The call is out', u'comment_id': 28271, u'content': u'They just launched the official event call. Through the mailing list I got this accompanying email:
\n\nThis in an invitation to the first Amsterdam Biohackathon organized. This Biohackathon event will focus on experimenting with the microfluidic technology called "Digital Microfluidics" in the context of automation of molecular biology and microbiological applications, diving deeper in how microfluidics, automation and software are changing the way biology is performed and how researchers and and extended audience can benefit from these systems.
\n\nA number of tracks have been proposed such as:
\n\nFocus will be on how bio-molecular assays can be performed in a micofluidic droplet-based environment and how visual programming and software is used to control such experiments. Thanks to the contribution of CellFree Technologies we will be able to run cell free experiments in microliter droplets. Another side track is looking into how "biosensors" like PCR and LAMP would fit into the system and how to visualize the signal of the reaction itself.
\n\nMachine vision and sensors are both tracks that that focus on how software and sensors, once integrated in such microfludiics systems, can be of use to control or observe particular phenomenons (i.e color change, fluorescence)
\n\nDigi.Bio will provide a number of devices based on digital microfluidics technology that the participants will be able to use to automate the choosen track or a project the participant will propose autonomously. Waag Society is providing support and hosting the event in the beautiful Waag building. The Biohackathon welcomes all applications, from any research field, that would benefit of microfluidic automation, thermal control and a suite of sensors and magnetic systems (see drive folder for recent literature on the topic).
\n\nThe Biohackathon will start\xa010am\xa0July 8\xa0and end\xa06pm\xa09 July, 2017.
\n\nFor further\xa0information or application\xa0of individual teams contact\xa0info@digi.bio
', u'post_id': 6388, u'date': u'2017-06-12 10:28:31'}, {u'user_id': 3593, u'title': u'Count me in!', u'comment_id': 26684, u'content': u'Yes, I would really like to join and the dates work for me, so count me in!
', u'post_id': 6388, u'date': u'2017-06-09 17:33:06'}, {u'user_id': 3697, u'title': u"Ok it seems like I can't participate anyway ", u'comment_id': 25583, u'content': u"Ok it seems like I can't participate anyway that weekend..
", u'post_id': 6388, u'date': u'2017-06-12 13:43:26'}, {u'user_id': 3697, u'title': u'I indeed appeared like a rabbit out of ', u'comment_id': 25525, u'content': u'I indeed appeared like a rabbit out of a hat @BramDeJaegher
\n\nI talked about it with @WinniePoncelet\xa0a while ago, somehow something always came up and then I just forgot about it basically
Anyway I\'d be happy to join, mainly because it\'s a meaningful project and it\'s something completely new for me, so I\'ll not get bored fast.
\n\nI\'d be happy to join the hackathon but if the places are limited by all means choose someone else..
', u'post_id': 6388, u'date': u'2017-06-09 16:55:14'}, {u'user_id': 3362, u'title': u'Welcome!', u'comment_id': 25392, u'content': u'Hi @stevendeblieck , welcome to the platform!
\n\nI\'ve known you for a while, but the others have not. Maybe you can shortly introduce yourself and say a few words on why you want to get involved with Open Insulin and\xa0join us for the hackathon\xa0
I hope you can make it to\xa0the next Open Insulin gathering on June\xa021st!
', u'post_id': 6388, u'date': u'2017-06-09 14:30:39'}, {u'user_id': 3645, u'title': u'Undisclosed content ', u'comment_id': 24960, u'content': u'Undisclosed content', u'post_id': 6388, u'date': u'2017-06-09 15:23:53'}, {u'user_id': 3697, u'title': u'Good idea, count me in.\n\nWill give us a ', u'comment_id': 23912, u'content': u'Good idea, count me in.
\n\nWill give us a lof of exposure to new ideas and maybe new partnerships..
', u'post_id': 6388, u'date': u'2017-06-09 10:42:42'}, {u'user_id': 3362, u'title': u'Pings', u'comment_id': 20450, u'content': u'Some pings for people who have shown interest before @ritavht | @Rpelicae | @Massimiliano
', u'post_id': 6388, u'date': u'2017-06-09 10:18:12'}, {u'user_id': 3641, u'title': u'I also want to join! Blocked in my ', u'comment_id': 15033, u'content': u'I also want to join! Blocked in my calendar!
\n\nI am sure that by then we will have an excellent purpose for the microfluidics device.
\n\nMichiel
', u'post_id': 6388, u'date': u'2017-06-08 14:14:51'}, {u'user_id': 3645, u'title': u'Undisclosed content ', u'comment_id': 8024, u'content': u'Undisclosed content', u'post_id': 6388, u'date': u'2017-06-08 14:08:34'}, {u'user_id': 3613, u'title': u'Radical monopolies & living systems', u'comment_id': 30794, u'content': u'This is very useful thanks @asimong... I particularly like your categorisation of enabling factors. I hadn\'t come across Denis Postle\'s work before but looks like there are some good leads to follow up there. It resonates with Ivan Illich\'s critique in Tools for Conviviality - dominance of technocratic elites and radical monopolies in the field of \'mutual caring, rapport and cooperation\' to use a phrase from the psyCommons backstory. I particularly love Illich\'s description of the kitchen table in his interviews with Caley as being a place of recovering what our modern universities have lost in the "search for truth". "Friendship is required first, the search for truth\xa0is based on the creation of the \'we\'."
\n\nMy questions on policy are not intended to\xa0dismiss\xa0the efforts of policymakers. My interest is more in how we\xa0gain\xa0a better understanding of the limits of policy as a tool or instrument to ensure wiser use of\xa0range of tools and practices which will achieve the desired outcomes of policy. In writing this response I\'m reminded of two things. One something Michael Spence (of Schumacher College) wrote in After Capitalism about what happens to laws when they become written - which I must dig out and re-read as I think this might connect to a particular limit of policy. The other Margaret Wheatley\'s book A Simpler Way,\xa0which as you may know, unpacks the\xa0obsession of the so-called civilized world,\xa0dating back to Victorian times with the world descending into chaos without man imposing order - while\xa0new science is revealing that order is a natural tendency and that we need to get better at how we\xa0work with that so as not to disrupt it. So I guess another way of coming at the question could be:\xa0what do policies look like that support natural responses to care and welfare rather than prescribe interventions and methods? Policies that are more generative in relation to those enabling factors you\'ve outlined. And beyond this... perhaps something fundamental about how we reconfigure the role of the State from a living systems perspective.
\n\nthanks again
', u'post_id': 6304, u'date': u'2017-06-18 10:06:00'}, {u'user_id': 200, u'title': u'Enabling factors and policy', u'comment_id': 30472, u'content': u'Thanks, @gehan. I value the focus on what is actually found to work in practice for real people. And it\'s often hard to isolate what, in general, are enabling factors, and what is just accident, that makes little difference. Then there\'s the added complication that people sometimes differ greatly in how they work. We can see this in education as well as work. What works to motivate one person might turn another one off.
\n\nI\'ll rephrase what I was trying to say earlier, in the hope it might help. I do think that we can consider a few different kinds of enabling factors for #opencare.
\n\n"Policy" -- what a hard word indeed. I think we would all agree that a policy statement can be no more than an empty promise; and that misguided policy can be worse than no policy. I can well believe that the policies for regeneration or addiction you refer to could have been misguided.
\n\nBut I wouldn\'t want to dismiss the efforts of policymakers altogether. Maybe policy can act as a reminder to concrete effective actions? A point for coordination? Or are you trying to say that there is something inherently wrong with policymaking at present? Maybe it\'s too much (a) embroiled in politics and (b) too "top-down". Maybe we could have a policy that states that all policies are to be developed from the bottom up? Or that certain areas should be kept deliberately free of policy?
\n\nIf you really think that policymaking is essentially flawed, then maybe you\'re thinking that our current mechanisms of government are fundamentally flawed, and I wouldn\'t disagree. Similar flaws appear at national and European levels. What we do about that is another matter. Happy to discuss...
', u'post_id': 6304, u'date': u'2017-06-17 11:27:40'}, {u'user_id': 3613, u'title': u'Thanks, I think my use of the word ', u'comment_id': 30406, u'content': u'Thanks, I think my use of the word \'environment\' is really not working for you - perhaps better to substitute this with\xa0\'enabling factors\'. Think of it like a petri dish - what is needed to cultivate care? Though yes, architecture & space have an impact.\xa0
\n\nThe Peckham Experiment sounds a bit like the Bromley By Bow Centre\xa0which I visited last year. They have a GP surgery on site but its very much integrated with a range of other activities - from a cafe providing employment and offering food prepared from Fair Share donations to workshop and artists space.\xa0
\n\nIt also stems from our own observations in our work - which kind of took a permaculture take on what was working for the people who had been engaged in our project over the years. What was very obvious was that it was the settings and \'environment\' created in the workspace that was as important as the work we were doing. So for example, creating spaces \'round a kitchen table\' was conducive to peer support as opposed to professional support. I like the notion of \'networked reciprocity\' @Alberto mentions. We\'ve been calling it\xa0frameworks of social solidarity.\xa0
\n\nThis led me to propose this\xa0theme with a hope\xa0of\xa0connecting up with others who share some curiousity about this and related topics. I\'m also particularly struck by the amount of energy that goes in to forming or influencing policy. This seems to be an instrument of an old world view that imagined human progress would lead us to predicting everything. What would be a) a more productive use of people\'s time and b) contribute to improved outcomes in relation to the often laudable intentions behind these policies? In Scotland, I see this happening on a national level - recently there was an academic paper published on the failed regeneration policies pursed over the last 30-40 years, costing millions of public money that have left the deprived areas that were targeted still at the bottom of the league table. But also in our own organisation, policy responses to issues such as addiction seem a little useless. What do other responses look like? Citizen led responses that include a rich mix of\xa0culture, values, new skills, awarenesses and practices. How do we work with this more skillfully?
\n\nAppreciate your thoughts and experiences. If you\'re ever in Scotland/Glasgow - stop in for a walk round our workshop\xa0& a chat.
', u'post_id': 6304, u'date': u'2017-06-16 20:02:00'}, {u'user_id': 200, u'title': u'Tbe Peckham Experiment', u'comment_id': 30201, u'content': u'@gehan, have you read about the Peckham Experiment? Pioneer Health Centre. I think a few people here have read about it. Was a long time ago, mind you. 1930s, 1950s I think. Googling it should work. Anyway, it might be a useful reference point. That still had the actual doctors on site, but health was generated by the people in that well-designed environment.
\n\nSo I\'m not saying it can\'t happen, just that I see the best way as environment plus culture plus skills.
\n\nSimon
', u'post_id': 6304, u'date': u'2017-06-16 18:42:49'}, {u'user_id': 3613, u'title': u'a new paradigm for care', u'comment_id': 29394, u'content': u'Hi Simon (@asimong),\xa0
\n\nThanks for your thoughts. What I\'m meaning by \'conditions\' is more the environment, the enabling factors - rather than \'contractual conditions\'. For me it connects to new understandings about the kind of leadership called for by emergent and uncertain times - leaders as architects, creating the containers for things to happen, self organise in a desirable way - rather than the old command and control models. I particularly love Margaret Wheatley\'s early work on this area.
\n\nWhat might these look like in practice? I think it will be a combination of the factors you go on to mention; culture, values, new skills, awarenesses\xa0and practices. That is what I\'m keen to explore as part of this theme of open care. There seems to be (particularly in this area of the public sector) an over-emphasis on interventions and policies that are quite entrenched in\xa0a command-and-control mindset. What is called for to engable\xa0self-organising, citizen-led responses to welfare needs of our fellow citizens? Also how this might pull the wider structures of our society and the non-health determinants of human flourishing in to formations that are less likely to deplete and more likely to\xa0generate\xa0greater heatlh.
\n\nI\'m still trying to articulate this theme clearly enough so as to connect with others engaged in connected work who may be open to contributing a session at the Open Village in October. Do you know of anyone that would be worth\xa0contacting?
\n\nthanks
', u'post_id': 6304, u'date': u'2017-06-16 10:21:37'}, {u'user_id': 4, u'title': u'Reciprocity', u'comment_id': 28645, u'content': u'There is a long-term reciprocity lurking behind this community stuff.
\n\nIt\'s totally OK, even a pleasure, to cover for someone. It can even be someone that never covers for you, as long as she covers for other people in the space (however you define its borders). So it is network\xa0reciprocity.\xa0But if you get the idea that someone is a free\xa0rider, then covering for her is not so OK anymore. It can only be OK if you really live in abundance, and it does not matter. But most of us are a long way from there.\xa0
\n\nCommunity care takes away the externality of health care ("the person that demands the care is not the person who is footing the bill", as @Lakomaa likes to say). Tradeoffs become very explicit. The best example I have seen of this is the discussion of health care in Amish communities in the US. Amish refuse insurance ("it de-responsabilises people"). So, when a person gets sick, the church collects alms to help her front expenses.\xa0But\xa0this might happen\xa0at a time when the community might be facing other expenses\xa0("setting up a farm for a young couple"). The community needs to decide what to do. The bottom line is: Amish people focus on\xa0preventative\xa0health care, because it\'s irt cheap and effective, and if they fall sick they are imposing a burden (however welcome) on their brothers and sisters. In other words, though the individuals are generous, the community does the economically efficient thing! The whole story is here.\xa0
\n\nAdditionally, the cultural evolution theorists like Wilson claim that we are hardwired to find and drive out free riders because of evolutionary pressure at the level of the group. This theory is super-fascinating, and deserves its own discussion, so I will just leave it here. It might help to explain why you prefer to help people who share your values.\xa0
', u'post_id': 6304, u'date': u'2017-06-16 16:33:42'}, {u'user_id': 200, u'title': u'conditions for empathy?', u'comment_id': 28267, u'content': u'I\'m wondering about what "the conditions for opencare" might mean in practice.
\n\nOn the one hand, maybe some aspects of care have no conditions other than a person who cares in an appropriate and relevant way. But practically speaking, how do we create the conditions where there is a positive cycle of care: where one person\'s care of another results in the second person being able to care more, and so on.
\n\nI\'m glad you named the purpose "to bring about greater love". That comes across to me as having a deep and strong foundation.
\n\nOn a practical, psychological level, my own experience is that if I care for people who don\'t share my values to some extent, it can be dispiriting. Like giving to people who believe only in taking, and not giving back, can be very taxing. So one thing, which is no different from what you have said, in different ways perhaps, is to bring people together in a community where people share the values of caring for others, giving back, giving forward, or something similar. People who want greater love in the world, and not just for themselves!
\n\nI believe there are many skills, relevant to this, that can be learned. Or if not learned, then maybe picked up from living in a culture where they are norms, through a process you could call "enculturation". So is at least part of what we are talking about here to do with learning the skills and habits of caring, and those behaviours being positively reinforced -- to use a phrase which sounds quite wrong in some ways?
\n\nLooking forward to reading more
\n\nSimon
', u'post_id': 6304, u'date': u'2017-06-14 11:35:43'}, {u'user_id': 3704, u'title': u'confidence', u'comment_id': 27410, u'content': u'I love the next to last paragraph of this post, @Gehan even though the reality of solving the problem of building confidence (especially in our adolescent girls) still escapes me.
\n\nThe image you start with here, building boats, of course is one great way, by\xa0making things and helping others make things. \xa0\xa0I would love to make a sailboat! \xa0(Passing on ideas for public health and developing ways for people to\xa0look in their own cells for signs of trouble is one of my key preoccupations, btw.)
', u'post_id': 6304, u'date': u'2017-06-15 07:10:50'}, {u'user_id': 3613, u'title': u"'being happens in the space between the self and the world'", u'comment_id': 27228, u'content': u'Thanks @markomanka - this link is interesting. I love what it says about Ubuntu philosophy; "I am because we are, and since we are, therefore I am." Growing the sense of \'we\' is so fundamental to every other generative and evolutionary human project - at least to my understanding so far. I think of it as our \'collective muscle\' - our ability to think on behalf of the whole. And this muscle\xa0has become so\xa0emaciated by the experiences of modernity. Its not simply about \'being together\' or connecting - virtually or physically. It has a markedly different quality. The Misak indigenous peoples of Columbia seem to take this to a whole other level. When we co-hosted a workshop with one of their elders\xa0late last year, I was really drawn in by their descriptions of the collective consciousness and how this only came about and was sustained by active engagement in Minga (collective work). You\'ll get a sense of the clarity of their thinking here:\xa0http://www.lifemosaic.net/eng/tol/life-plan/ though\xa0I don\'t think they mention Minga in this video.
\n\nI don\'t get so much time to read so am a bit ignorant of\xa0Descartes thinking but\xa0am very familiar with its consequences for humanity and guess I have read enough on that!\xa0The problems of the modern mind... one of the things I most enjoyed learning in the last three years was that we have three brains - observable by a surgeon - discovered about 100 years ago - but forgotten because we are blind to facts that don\'t support dominant world views - in this case the myth of hierarchy (there can only be one brain)! But also perhaps the dictatorship of mind as our primary sensing capacity.
\n\nI love this quote too;\xa0"Instead,\xa0being\xa0is an act or event that must happen in the space between the self and the world."
\n\nWe hear a lot in our line of work - this guy has low self esteem - or this woman lacks self confidence. I now see from reading the article you sent that this is itself based on Cartesian thinking. And\xa0I think it goes way beyond loss of self esteem etc\xa0- I think\xa0we\'ve been observing the people arriving at our door with profound loss of all\xa0sense of self. The article you sent helps to describe why that might be. Sense of self is coproduced in forming a sense of collective.
\n\nPerhaps these offer new frames through which it might be more helpful to understand the mental health challenges of modernity. Afternow have done some really interesting research on this:\xa0http://www.afternow.co.uk\xa0
\n\nThank you for sharing these insights...
', u'post_id': 6304, u'date': u'2017-05-08 17:58:09'}, {u'user_id': 854, u'title': u':)', u'comment_id': 26676, u'content': u'Hi @gehan
\n\nvery interesting approach to care, it has been refreshing to read your words.
\n\nHave you, by any chance, read this\xa0https://aeon.co/ideas/descartes-was-wrong-a-person-is-a-person-through-other-persons or anything along the line, recently? There is a renewed interest in the role of social inclusion (or lack thereof) as the root rather than the consequence of mental health\xa0challenges... And I very much like that you suggest to connect the topic to reflections about the hyped citizenship income, and the nature of work. How do we envision the future of our societies, within the frame of our bias for autonomy, freedom, and independence?
\n\nLooking forward to reading more about your GalGael \xa0
Great to meet you @Gehan , Nadia speaks highly of you.
\n\nI do not have nearly your experience around care, so I\'ll defer to your judgment as to people\'s emotional needs. We started looking into care beccause, frankly, it keeps getting in the way. We\xa0are always trying to build something (an online community, a consulting business, a space for life and work... ). Building is hard, and normally underpaid because no one wants to pay for the costs of coordination and the risk-taking phase when you are building, but the thing you are building is not yielding its expected benefit because it\'s not finished. So people keep burning out, or having to take long breaks, or otherwise dropping the ball. That affects everyone else, is unfair on the tougher people who keep grinding it with less support, and fragilises everything we do.\xa0
\n\nThis is ust my own personal \xa0take, mind you. But me, I am too much of an economist not to see the efficiency gains of involving everyone, being super-flexible as to the form in which different people contribute. The Reef has a calming, burnout-preventing\xa0effect on us simply because being in one live-work place allows us to support each other in more ways. If I am exhausted, or pissed off, I can share whatever I do to flush the ad stuff out of my system: if I feel like cooking a meal I can offer you to cook for you too (or help me, if you feel like cooking too). If I feel lik going for \xa0run or a long walk I can invite you. It costs exactly nothing. But occasionally it will be just what you need: taking a break, regenerating a bit. We have already noticed how we are working fewer hours, and cutting out exactly the worktime where we are most stressed or tired \u2013 the worktime that does not produce anything. Compare the economics of this with those of bringing in a top-heavy professional system of counseling and treatment.\xa0
\n\nI have not read Illich, but yes, "conviviality" does emerge. We are trying to build to little\xa0traditions: the Thursday evening dinner in the house, an open brunch on the last Sunday of the month. We hang out. We take our time. We try to stop our colleagues and friends from breaking for trying too hard. We go on.\xa0
', u'post_id': 6304, u'date': u'2017-05-10 10:11:25'}, {u'user_id': 3613, u'title': u'Some hellos', u'comment_id': 23520, u'content': u'Hello @Noemi thanks for your response. Good this strikes a chord. Looking forward to learning from your experience too.
\n\nThanks for the heads up on other projects. There\u2019s a lot of inspirational work taking place that we\u2019re keen to do more connecting up with beyond those we collaborate with in Glasgow and other areas of Scotland.\xa0
\n\nHello @James - it looks like our work here in Glasgow has quite a bit in common with your work in Access Space and Makers although we\u2019ve not quite gone digital yet. I agree that publicly-funded activity is limited in a number of ways and we\u2019ve been similarly burned in partnerships in the past. Our organisation has survived a number of cuts and financial challenges and nearly didn\u2019t make it after our EU employability funding came to an end after 7 years in 2012 (though I personally find the employability agenda deeply problematic). We started building a number of diverse income streams after that to create greater financial stability for the future. These have grown to become our trading subsidiary and we are trying to integrate the learning and development work we do with enterprise activities.
\n\nMaking the \u2018numbers look pretty\u2019 (and less in the red!) has been tough and we\u2019re at a point where we don\u2019t know if we can make it work. We see clear potential but what happens as people have less money to spend? My hunch is that for localised manufacturing to work we need structural measures to offset the realities of the global marketplace and explore ways of interfacing and contributing to the growth of non-monetary economies.\xa0
\n\nIf I\u2019m down in Sheffield I\u2019d like to stop in. If you\u2019re in Glasgow please pop by.
\n\nHello @Alberto, I enjoyed your Spawning the Reef blog post. Reminds me of Ivan Illich\u2019s Tools for Conviviality; the big machines we created - perhaps health and social care institutions are the best examples of this - no longer serve humanity. In our own workshops, in watching how people positively respond to being needed instead of being \u2018treated\u2019 - I cannot help feel strongly that more than services,\xa0people need to be themselves needed - part of their solution. Too many of the ways our societies are set up make this difficult. Margaret Wheatley said \u201cA life well lived is one in which we each find an opportunity to give our gifts rather than have our needs met.\u201d and in my experience communal spaces create more opportunities for this to happen and meet more of the spectrum of human needs that our current divided lives make possible.
\n\nGo well\xa0
\n\nGehan
', u'post_id': 6304, u'date': u'2017-05-07 17:25:06'}, {u'user_id': 4, u'title': u'Agreed on all counts', u'comment_id': 23102, u'content': u'Yes, OpenCare + MaKEY does not seem a good match.
\n\nBut yes, building bridges is good. In fact, that\'s why Nadia was in Glasgow to begin with \u2013 @Luke_Devlin started building the Scottish end, and we wanted to walk our bit of it, at least symbolically. We would love to work with you, @James .\xa0
\n\nI do not have a concrete idea at the moment. Will need to think about it more.
', u'post_id': 6304, u'date': u'2017-05-09 20:09:42'}, {u'user_id': 2569, u'title': u'Ouch!\n\nThis wins the award for bleakest B-word take ', u'comment_id': 21744, u'content': u'Ouch!
\n\nThis wins the award for bleakest B-word take i\'ve read this weak.
\n\n"Meanwhile, of course, I have studiously avoided the implications of the B-word. However, as Britain dusts off its application to join the Third World, it\'d be a very positive thing for us to build some bridges with our friends from the future. Any suggestions?"
\n\nSounds like you\'ve got a solid start on making positive changes though.
', u'post_id': 6304, u'date': u'2017-05-07 17:35:16'}, {u'user_id': 14, u'title': u'Horizon 2020 Collaboration? Perhaps a Future Project?', u'comment_id': 19837, u'content': u'Hi @Alberto,
\n\nI suspect that we should understand these two projects as running in parallel, rather than collaboratively. MakEY (the project we\'re a partner in) is 100% focused on early years kids, devising workshops to help teachers gain confidence and skills to lead higher value making sessions for 5-8 year-olds, hopefully enthusing them with STEM. We\'re looking to have fun with robots, drawing, moulding things, playing with conductive materials and electricity; then we aim to develop best practices which we can disseminate to other school environments. A further objective may be to understand what kind of "makerspace" could be accommodated inside a school. As you\'ll no doubt be aware, there\'s an EU-wide problem with retaining young people in STEM learning, and this will put us in a poor position to compete globally, and make best use of the new transformations in manufacture.
\n\nFrom our point-of-view at "Makers", our interest in making extends into the enterprises that making enables. We welcome the strategic engagement with making that MakEY suggests - but we also question whether the new, high-tech jobs that relocalised manufacture suggest are really real, or another digital illusion. If relocalised manufacture means nothing more than an "automated manufacture pod" attached to each supermarket, that robotically creates objects on demand from a centralised database, then, frankly, it is of little interest. While it may have some environmental advantages, it will only serve further to centralise wealth and employment. Only if relocalised manufacture reinvigorates locally-owned enterprises, bringing high skill, high quality jobs into neighbourhoods, will it have a positive economic effect, and only if it can help to relocalise the act of invention itself will it be a positive force on a cultural level.
\n\nMeanwhile, of course, I have studiously avoided the implications of the B-word. However, as Britain dusts off its application to join the Third World, it\'d be a very positive thing for us to build some bridges with our friends from the future. Any suggestions?
\n\nAll the best,
\n\nJames
', u'post_id': 6304, u'date': u'2017-05-07 15:01:20'}, {u'user_id': 4, u'title': u'Always great to hear from you', u'comment_id': 19274, u'content': u'\n\nJust one small thing: OpenCare is indeed a Horizon 2020 project (official landing page with all the logos, bells and whistles: http://opencare.cc). How could we, concretely, collaborate? Maybe you want to connect with @WinniePoncelet , spearheading a project to make an open source process to produce human\xa0insulin. Among other things, Winnie is putting together a session on citizen science in care at an event OpenCare is organising, called OpenVillage. Does this sound interesting to your junior school crowd?\xa0
', u'post_id': 6304, u'date': u'2017-05-07 12:45:21'}, {u'user_id': 3, u'title': u'Thinking alike: work/home coommunity space model', u'comment_id': 17052, u'content': u'@James welcome back!
\n\nWhoa, funding cuts due to being \'too successful" sounds like a familiar story - edgeryders at the end of our Council of Europe journey, could have gone for longer if incentives were better aligned, but in the end it might be better like this: an independent spinoff is probably an even better story. If you have blogged somewhere about the details of the affair, or the\xa0promising results,\xa0I\'d be interested in reading.
\n\nWe\'ll come visit with the first occasion - i dont know if you\'ve seen this, but we\'ve just moved in\xa0a common work/home space in Brussels, also with a guest room / AirBnb and a view on achieving resilience by creating more sustainable lifestyle and work. @Alberto just blogged about it here.\xa0Much to learn I think- \xa0this year\'s event has a specific focus on community acquired and owned assets - from property to others.. October 19-21, in Brussels. Really hope to see you, if not earlier.
', u'post_id': 6304, u'date': u'2017-05-07 11:54:46'}, {u'user_id': 14, u'title': u'Something Else?', u'comment_id': 14151, u'content': u'Hi @noemi! You mentioned that I\'m now doing "something else" after I left Access Space. Indeed! In a sense I am doing a very similar thing - but with a different business model and emphasis.
\n\nI left Access Space just after we\'d delivered an incredibly successful EU funded project: Sheffield Community Network. The project\'s overarching objective was to create jobs and social enterprises in the Sheffield City Region, and my particular role was to investigate the local employment potential of digital making technologies, give support to local enterprises that were investing in these processes, and help understand what positive local impacts could come out of engagement with 3D Print, Lasercutting, CNC, Digital Embriodery and so on.
\n\nWe (Access Space) were a minor partner, receiving less than 5% of the project budget - yet one of our clients, who we helped to prototype a key product, has created more jobs than the WHOLE PROGRAMME\'S OBJECTIVE. How were we thanked for this? We had our budget cut.
\n\nThat led me to feel that there is no future in publicly-funded programmes, particularly when they involve asymmetric power relationships - a local authority, for example, can simply dictate to minor partners how a budget will be deployed. This is partnership in name only,
\n\nSo, I and my wife Lisa started "Makers" - a high-street shop which combines digital making and traditional craft activities with upcycling and re-use. Our objective is to take the lessons I learned from my research at Access Space, and deploy it in a context that\'s completely self-sustaining. Our logic is that, in these increasingly reactionary times, public money will not be available to help localities, so we\'ll need to make sure that what we do works on a completely commercial basis. This means that job number one is to SELL! Every other objective can only be realised after we understand exactly how to relocalise manufacture SUSTAINABLY.
\n\nIf we can find this path, then the potential for replication is obvious. If not, I fear that the new "maker economy" will be so much hot air, and digital making will suck resources out of localities and neighbourhoods, just as have so many other waves of supposedly "decentralising" technologies.
\n\n"Makers" has a website here: http://makersontheedge.com. We sell things that we and local people have made, plus interesting old, curious and unique things that we acquire. What we don\'t sell is mass manufactured stuff. We also run craft and making workshops. Oh, and if you want to come and visit, and maybe to a Makers residency, we have a self-contained flat above the shop which we rent on AirBNB here! https://www.airbnb.co.uk/rooms/13081880?preview
\n\nWe\'re currently involved in a Horizon 2020 project, researching ways to introduce making into junior schools, encouraging engagement with Science, Technology, Engineering and Mathematics, and we\'d welcome collaborations with other research projects. Hope to see some Edgeryders here in Sheffield soon!
\n\nAll the best,
\n\nJames
', u'post_id': 6304, u'date': u'2017-05-07 11:07:27'}, {u'user_id': 3, u'title': u'Creating the conditions for opencare: in for the long haul', u'comment_id': 6792, u'content': u'Hi @gehan it is a pleasure to meet you, welcome!
\n\nI\'ve heard great things about the work in Glasgow from Nadia, and would be interested in zooming in this overarching care theme during our festival later in the year. The reason for me personally is obvious: being a community manager here at edgeryders, the core of my work goes into creating the conditions for care, in a community and organisation: whether it\'s trying to forge new relationships and learning, creating\xa0meaningful work for those of us not willing to\xa0compromise\xa0to an exploitative\xa0job market but needing to find resilience in precarity, or just being on the margins somehow socioeconomically but also health wise, or culturally.\xa0I realise more and more how ambitious this is and how we need to be in it for decades to understand how it can shift things broadly, culturally or in policy, like you say - doing things differently, rewiring ourselves etc.
\n\nSome projects and wonderful people I know which you might want to consider connecting with, mainly because they\xa0go deep into rewiring communities:
\n\nThis residency concept is\xa0onto something.\xa0
\n\n@Costantino and the WeMake crowd are exceptionally skilled at changing their space on the fly. In this they remind me of @Matthias , who dreams of a world in which everything is made by Euroboxes mounted on Europallets. Given a forklift and trucks you can evacuate a large office or home at a moment\'s notice, or reconfigure your space on the fly.\xa0
\n\nIn terms of the digital space, the same modularity concepts apply. People should use the same tools whenever possible, like in WeMake,\xa0to facilitate interoperability and reconfigure your\xa0workflow\xa0on the fly.\xa0
\n\nOf course this has got nothing to do with care. It\'s just what work well done \u2013 any work \u2013 looks like.\xa0
', u'post_id': 864, u'date': u'2017-06-16 16:07:07'}, {u'user_id': 3704, u'title': u'ethical aims', u'comment_id': 33818, u'content': u'Hi!
\n\nThe diybio.org group made this code in 2011, as far as I know. \xa0We have a handout for prospective members of Hackuarium\xa0that includes it too...
\n\nHere it is:
\n\nTransparency
\n\nEmphasize transparency and the sharing of ideas, knowledge, data and results.
\n\nSafety
\n\nAdopt safe practices.
\n\nOpen Access
\n\nPromote citizen science and decentralized access to biotechnology.
\n\nEducation
\n\nHelp educate the public about biotechnology, its benefits and implications.
\n\nModesty
\n\nKnow you don\u2019t know everything.
\n\nCommunity
\n\nCarefully listen to any concerns and questions and respond honestly
\n\nPeaceful Purposes
\n\nBiotechnology must only be used for peaceful purposes.
\n\nRespect
\n\nRespect humans and all living systems.
\n\nResponsibility
\n\nRecognize the complexity and dynamics of living systems and our responsibility towards them.
\n\nAccountability
\n\nRemain accountable for your actions and for upholding this code.
\n\nDIYbio code of ethics, Draft from the European Delegation, May 2011\xa0
\n\nProbably there could be many versions of this out there now, of course!
\n\nI should also note that DIT Research is more close to my heart (do it together!) than the original diybio... \xa0
ciao for now,
\n\nRachel
', u'post_id': 33752, u'date': u'2017-06-16 07:18:30'}, {u'user_id': 4, u'title': u'Ethics', u'comment_id': 33813, u'content': u'Hello @Rachel . You also mentioned the day bio code of ethics in the Open Insulin group. Can you say more about it? I have never heard about it, and perhaps others are in the same situation.
', u'post_id': 33752, u'date': u'2017-06-16 06:03:15'}, {u'user_id': 3704, u'title': u'cultural humility!', u'comment_id': 33812, u'content': u'I clicked on the Theater of the Oppressed link and saw the point about cultural humility!
\n\n@Shajara \xa0Now that is a really a good idea!! \xa0
\n\nDid you know \'modesty\' is the 5th principal in the diybio code of ethics, btw?
\n\nI am also interested in open poetry, spoken word, and think most problems can be solved if good communication is possible!
', u'post_id': 33752, u'date': u'2017-06-15 19:54:10'}, {u'user_id': 3374, u'title': u'Curious about your Experiences!', u'comment_id': 33802, u'content': u'Hello, @evelina!
\n\nSimilar to @Alberto, \xa0I\'m curious your experience\xa0with this so far. Spoken-word is a passion for me and I\'ve definitely seen the power it has to give an outlet for\xa0people\'s voices.\xa0
\n\nI also wonder if you have looked into any other creative mediums for creating common ground? One thing I am looking into in this realm is Theater of The Oppressed. Maybe this upcoming webinar would be of interest to you?
', u'post_id': 33752, u'date': u'2017-05-07 16:35:37'}, {u'user_id': 4, u'title': u'Have you tried it yet?', u'comment_id': 33795, u'content': u'Hello @evelina , welcome from me too. Spoken word for cultural integration\xa0sounds like a new approach\xa0to me, at least in continental Europe. Maybe there is soimething in English-speaking countries, where spoken word as an art form is more widespread.I recall @Alex_Levene is into poetry and spoken word, and so is @Dougald . Maybe they know?
\n\nHave you tried it yet? Even on a small scale? If so, how did it go? And: was there a language barrier to negotiate?
', u'post_id': 33752, u'date': u'2017-05-05 20:52:33'}, {u'user_id': 3, u'title': u'Any link further would be appreciated indeed', u'comment_id': 33785, u'content': u'Also given the interest from Alberto below..\xa0Thanks!
', u'post_id': 33752, u'date': u'2017-05-06 01:11:12'}, {u'user_id': 3082, u'title': u'Hey @Noemi\n\nI live in Amsterdam and I work ', u'comment_id': 33781, u'content': u'Hey @Noemi
\n\nI live in Amsterdam and I work a lot here with spoken word poetry and inclusion and self development. I am happy to share if you like!
', u'post_id': 33752, u'date': u'2017-05-05 15:40:09'}, {u'user_id': 3, u'title': u'Poetry?', u'comment_id': 33768, u'content': u'Hi @evelina , I remember being briefly in touch when you joined Edgeryders about a year ago, what made you consider posting? \xa0
Are you based in Vilnius? Curious how your city, or Lithuania broadly, are dealing with diversity, and whether you look at it as an in-group thing (different groups\xa0within the same nation) or an out group. For example where I come from, Romania, the issue of diversity is treated at the politica/ media level as a matter of ethnic groups among the Romanian nationality. It\'s\xa0less a matter of incoming, new groups - where things look good in the quiet way:\xa0since we are not exposed to it so much or exposure brings in clear benefits rather than strains (i.e. tourism).
\n\nHow come you\'re thinking about artistic expression as a solution, do you have experience with that? You probably need to meet others here interested in culture and diversity - Edgeryders has a Culture Squad in the making where we try to set up projects specifically on that, maybe have a look?
', u'post_id': 33752, u'date': u'2017-05-05 09:19:49'}, {u'user_id': 3, u'title': u'The context of making culture that spills into policy ', u'comment_id': 10148, u'content': u'Yesterday during our community call @Gehan reiterated how interested she is in how new care ecosystems at the collective, groups level can shape new culture which becomes policy at one point.
\n\nOpenrampette is a mix, as the City is interested in open care and doing more open policy making - so having a mandate as partners in OpenCare research they were on the lookout for contexts where learning and sharing knowledge with citizens can happen.
\n\nI tried to pick most relevant reads that you can skim through, they are so many reporting on openrampette ...
\n\nOutline of the\xa0collective enforcement of the mobility\xa0policy in Milano
About a process of co-design with citizens
Next up: how to get it into #OpenVillage Fest, which aspects are more relevant.
', u'post_id': 850, u'date': u'2017-06-15 10:01:53'}, {u'user_id': 3704, u'title': u"Beautiful! @albertorey \xa0Hoping hope isn't really the only ", u'comment_id': 24498, u'content': u'Beautiful! @albertorey \xa0Hoping hope isn\'t really the only thing left, however! \xa0That\xa0log scale on the E.coli graph certainly gives me a new perspective to consider our current\xa0Montreux lake water study! \xa0Really love the music too, and look forward to joining in the discussion about how to raise awareness via art for public health (also in the context of \'genomic integrity\'& AGiR! - not only cleaning up pollution)...\xa0 I would like to see some of the macroinvert biotic index data, if possible!\xa0 Did you tour the whole river, too?\xa0\xa0I wonder if Nepal has sewage lines and treatment plants already. \xa0(or not ??) \xa0What is the interesting game with hands into the hole in the stone??\xa0\xa0Dumping garbage in the river was common also, even back in the \'80s, in Switzerland. \xa0Another\xa0weird thing around here, some\xa0people say fish die-offs can\xa0because the lake water is too clean. \xa0Also, federal standards of water quality are\xa0not based on presence of trash! \xa0Any thoughts? \xa0Looking forward to further discussion (the real kind, too!)! \xa0
Hi @albertorey ! It took me a while to get back to this after the call on Wednesday, sorry for that.
\n\nWhat I am interested in when talking about communication is how it leads\xa0to action. In my field, this would be for people to get engaged in research or development to ultimately improve the water quality. Water quality (and air and soil quality) are usually hot topics in civic uses of science. Here in Belgium alone, the biggest university-led projects are about air quality, as well as most grass-roots open tech projects. It shows that people really do care a lot about it. Eg. the air quality in my hometown\xa0of Ghent is pretty bad.
\n\nIt might be interesting to hear the perspective of some people working in grass-roots water quality measuring. Communication is often an expensive (time- and/or\xa0moneywise) aspect. Your work as an artist is potentially a\xa0great help.
\n\nHas your work on making complex issues around\xa0bodies of water acessible somehow contributed to citizen-led research?
', u'post_id': 6315, u'date': u'2017-05-30 15:01:59'}, {u'user_id': 3422, u'title': u'Thank you!', u'comment_id': 18523, u'content': u'Thank you for embedding the video and your assistance! I will take care of it myself next time.
\n\nI had tried to post some comments with my iPhone but it did not work. It seems to be working well on my computer.
\n\nThank you for the feedback and please let me know when decisions have been made for the conference. I have a few research trips coming up and am trying to figure out my schedule with the other researcher partners in New Mexico and in New Zealand. There is always too little time and money to do all that is necessary.
\n\nThank you again.
\n\nAlberto
', u'post_id': 6315, u'date': u'2017-05-16 13:11:36'}, {u'user_id': 3, u'title': u'Message coming up', u'comment_id': 17801, u'content': u"Thanks, your interest in OpenVillage is much appreciated.
\n\nRequests for support acknowledged. Many community members are just now making different proposals for what the festival program could contain and so lots of content to go through. We're gonna need, together as a group, to see how each initiative or theme works together with others to advance a collective opencare agenda and what we as a community can show to the world, so to speak.\xa0Expect an email reply with updates these days, ok?
\n\nAs for the Fellowships, a few days ago\xa0posted an update in this group saying we need more time to see which proposals get others enthusiastic about them. That's always a good measure for parsing.
\n\nPS I embedded the video. For next time: if you go to the Edit tab above the post you are able to make changes yourself, so just go ahead.
", u'post_id': 6315, u'date': u'2017-05-15 06:22:18'}, {u'user_id': 3422, u'title': u'response', u'comment_id': 15247, u'content': u'Hi Noemi,
\n\nGood to talk to you again!
\n\nI apologize for not being able to join in the discuss yesterday. We are in the middle of final exams here on campus and I was in class.
\n\nI would love to present at the conference but I would need some travel support. I would also be interested in being a Fellow if that\'s a possibility.
\n\nI\'m sorry I was confused. I listed the questions that we hoped we could address by our presentation. My question is "What is the best way share our project and our interest in working on other organizations around the world?"
\n\nThank you for taking the time to look at the video and your kind comments!
\n\nHere\'s the code:
\n\n<iframe src="https://player.vimeo.com/video/178565032" width="640" height="360" frameborder="0" webkitallowfullscreen mozallowfullscreen allowfullscreen></iframe>
\n\nFor the introduction, do you need something like "The Biological Regionalism Session discusses ways to use art as a way to introduce complicated environmental and health issues to a diverse audience"
\n\nI look forward to working with you.
\n\nThank you!
', u'post_id': 6315, u'date': u'2017-05-11 12:39:01'}, {u'user_id': 3, u'title': u'Frame a question?', u'comment_id': 8169, u'content': u'Hi and welcome back @albertorey , would be great to finally meet. Are you coming to the Open Village Festival this October in Brussels?
\n\nIf so and as we prepare the schedule given all the proposals coming in - I would be interested in zooming in on one question which you would like to answer during the session. It may be a question you have and could not answer yet, for\xa0whichyou invite contributions and active participation from the people attending. I believe this is the best way to get the most out of the festival and learn from others too. The less presenters versus spectators, the better!
\n\nI just watched the Basmati river project documentary you linked to in your story, it is beautiful. Can we embed it on this page so people can click and view it directly? Then add an introduction to the session so we can promote the proposal\xa0around the network and see what new ideas come to help prepare it.
', u'post_id': 6315, u'date': u'2017-05-11 08:43:57'}, {u'user_id': 4, u'title': u'Cost a better indicator', u'comment_id': 30404, u'content': u'Insulin consumer \xa0prices carry little information. They are too dependent on the particular form of subsidisation that exists in each country. Estimates on costs are likely more useful.\xa0
\n\nAlso, is the infographics going to refer to Belgium? \xa0The EU? The world?\xa0
', u'post_id': 6277, u'date': u'2017-06-13 23:05:09'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 30199, u'content': u'Undisclosed content', u'post_id': 6277, u'date': u'2017-06-13 22:00:46'}, {u'user_id': 3362, u'title': u'Which perceptions to break?', u'comment_id': 29949, u'content': u'There is plenty of data out there it seems, it comes down to choosing the data that will have our desired effect. Open Insulin takes a more activistic approach: first and foremost we do things\xa0and would like people to join us in doing things (on two aspects: production of insulin and prevention).\xa0I think informing and opening a debate, although important, are means to an end or (desirable) side effects for us.
\n\nFor me, things stick when some perception I held is broken (while avoiding the sensational). Eg., for most Belgian citizens it is a surprise that diabetes is a massive financial burden for US patients, while this is widely known for a US inhabitant. Just an example, better yet would be if it is also relevant for the same Belgian citizen. Say, data on the cost savings for tax payers. It is important to define the audience like Alberto mentions below.
\n\nIn my opinion, we focus on the local project first\xa0and produce something that can be (partially) salvaged for other contexts and uses.
', u'post_id': 6277, u'date': u'2017-06-14 08:58:07'}, {u'user_id': 3, u'title': u"Nope, I'm not on the gdrive", u'comment_id': 29939, u'content': u'Hi @Scigrades I\'m not (yet).. but you can give permissions only to one document- of course, if copy is not the problem and you\'re discussing structure still, this can wait. I saw words like "may serve", "continued research", "improved versions" which dont make for the most convincing case, they sound a bit academic.
\n\nGetting there!
', u'post_id': 6277, u'date': u'2017-06-14 05:21:36'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 29902, u'content': u'Undisclosed content', u'post_id': 6277, u'date': u'2017-06-13 22:06:11'}, {u'user_id': 4, u'title': u'Hm', u'comment_id': 29671, u'content': u'Rising costs: that\'s in your own draft , I am just proposing an aggregation mode. EDIT: sorry, I was wrong. You mention insulin prices, not costs.\xa0
Bringing down the price: somebody here suggested 40% as a reasonable target for biosimilars. EDIT: that person was @GLS9000 and the comment is this:\xa0https://edgeryders.eu/en/comment/27074#comment-27074
', u'post_id': 6277, u'date': u'2017-06-12 15:28:00'}, {u'user_id': 3584, u'title': u'Global data on the rising cost of insulin?', u'comment_id': 29391, u'content': u'Thanks for the comment Alberto, very helpful. Indeed too much text now, I was going to cut the text but we first need to divide the infographic in different frames.\xa0
\n\nI\u2019m still a bit confused about the rising cost of insulin, is this\xa0mainly happening in the USA? What kind of data should I use, there is no global data on the rising cost of insulin.\xa0I can analyse and visualise big data sets, but we need reliable datasets if we want to make a clear statement.
\n\n\u201ca missing information is how much open sourced processes could bring down the price\u201d => great idea! How should we define this?\xa0
\n\n@Noemi : Not yet, are you in the open insulin drive?
', u'post_id': 6277, u'date': u'2017-06-12 15:03:10'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 29055, u'content': u'Undisclosed content', u'post_id': 6277, u'date': u'2017-06-14 09:52:42'}, {u'user_id': 3, u'title': u'Yeaaay', u'comment_id': 28999, u'content': u'@Scigrades do you have an online doc where we can help with the text or make suggestions?
\n\nOther than copy I\'m not sure I can provide feedback, I\'m a really bad designer
Great work by the way... !!
', u'post_id': 6277, u'date': u'2017-06-12 14:56:05'}, {u'user_id': 4, u'title': u'Data driven', u'comment_id': 28644, u'content': u'Hello @scigrades . Great first stab, congratulations!
\n\nI would start from the info you you want to convey, and convey by data visualisation rather than text whenever possible. Maybe the number of deaths is also better represented by a number or a time series rather than a block of text.
\n\nNext, I would spend some time visualising the data. Histograms? Dashboard-style numbers? Time series? \xa0If your story is "rising social costs", time series make most sense. You could even combine basic information: put in the same graph the rising number of diabetics D, the rising price of insulin P, and the total cost of providing insulin D x B x Q, where Q (constant ) is the number of insulin doses a patient consumes in a year. The product of two rising values rises very fast!
\n\nIf this is your story, a missing information is how much open sourced processes could bring down the price.\xa0
\n\nAgain, you could experiment with dataviz to convey the message. For example, you could project your cost of insulin into the future , with and without open sourced processes.
\n\nOnly then you would write a text that contains the info that you cannot convey by dataviz. My hunch is that now you have too much text for an infographics, but I am no expert. Hope this helps.\xa0
', u'post_id': 6277, u'date': u'2017-06-12 14:37:26'}, {u'user_id': 3584, u'title': u'Infographic draft', u'comment_id': 28261, u'content': u'I need some more input from the different partners about the content of the infographic before I can progress with the graphic. Feel Free to comment. Any thoughts?
\n\nbest,
\n\nPieter
', u'post_id': 6277, u'date': u'2017-06-12 13:54:08'}, {u'user_id': 3584, u'title': u'Infographic draft', u'comment_id': 26668, u'content': u'', u'post_id': 6277, u'date': u'2017-06-12 13:52:38'}, {u'user_id': 3362, u'title': u'What do we want to achieve?', u'comment_id': 24398, u'content': u'I think the comment of @Nadia in the earlier thread on education\xa0is relevant here:
\n\n"Is it here? Is it now? Does it affect me? Is there anything I can do about it? More generally what is the behavioral change that you want to achieve with each outreach effort?"
\n\nI think this is the starting point: what do we want to achieve with the infographic? The graphics I saw from idf were kind of static. Mainly some facts and figures on diabetes. I think we want something that activates. There are already some concrete things that it could be used for, like education and prevention.
\n\nWhat would be useful for\xa0education, @NiekD ?
\n\nWhat is the message you\'d like to get across for the project in the US @dfko ?
\n\n@Nabeel_p and @CarolineM , from your experience in the field with patients and with visual science communication: what are the criteria in your opinion for\xa0such a visual to be useful as a tool for eg. a community worker?
', u'post_id': 6277, u'date': u'2017-05-15 14:09:14'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 22245, u'content': u'Undisclosed content', u'post_id': 6277, u'date': u'2017-06-14 09:51:57'}, {u'user_id': 3584, u'title': u'Information for the general diabetis infographic', u'comment_id': 21120, u'content': u'hi,
\n\nSo I gathered some info for the infographic with general diabetes info. Feel free to comment, I would like to start designing this Wednesday, Thursday.
\n\nTitle: So what do you know about "The Sugar" ?
\n\nIntro: The number of people wih diabetes has doubled in the last decennia.\xa0Everybody knows someone that is suffering from\xa0diabetis but do you know what is really happening inside the body of someone with diabetes? Do you know what to do when someone gets a hypo?\xa0In this infographic you will find some basic info about diabetes and how you can prevent it.\xa0
\n\n1) What is diabetes?
\n\nDiabetes is a chronic condition that increases blood sugar levels. This can have two causes: either the insulin is insufficient or the insulin produced is insufficiently effective. In both cases, the cells can not absorb enough sugar (glucose), which accumulates in the blood. There are two types of diabetis:
\n\nType 1: Occurs\xa0usually in children or adolescents and affects less than 10% of all people with diabetes.\xa0Body does not produce enough insulin.
\n\nType 2: Over 90% of people with diabetes have diabetes type 2. This occurs especially from the age of 40 years.\xa0Body produces insulin but can\u2019t use it well.
\n\n2) How many people have diabetes?\xa0
\n\nThe number of people with diabetes has risen from 108 million in 1980 to 422 million in 2014.\xa0In 2012, an estimated 1.5 million deaths were directly caused by diabetes and another 2.2 million deaths were attributable to high blood glucose. WHO projects that diabetes will be the 7th leading cause of death in 2030.
\n\n3) What are the complications? How can you prevent them?
\n\nDiabetes can lead to complications in many parts of the body and increase the risk of dying prematurely.\xa0
\n\nIntestines & stomach problems, heart attack, kiney failure, blindness, hearing loss, stroke, damage of nerves and blood vessels, amputation of feet or leg, fatigue,..
\n\nEat and drink healthy, quit smoking, keep your weight under control, exercise, keep the sugar levels in your blood under control, check your feet, get a check-up on a regular basis, keep learning about diabetes!
\n\n4) What is\xa0gestational diabetes?
\n\nA special form of diabetes is gestational diabetes. This occurs especially in the second half of pregnancy. This calls for further follow-up to minimize risks during pregnancy and at birth. Usually the diabetes disappears after childbirth. The diagnosis of gestational diabetes is an alarm signal. It means that you have a high risk of developing persistent diabetes in the first 5 to 10 years. Pregnancy diabetes occurs in 5 to 20% of pregnancies, usually in the second half of pregnancy.
\n\n5) What do you need to do when someone has an attack?
\n\nIf your blood sugar levels fall below 4 mmol / l, you have a hypo. That\'s what you notice:\xa0
\n\n\u2022\xa0\xa0 \xa0to sweat
\n\n\u2022 vibrate
\n\n\u2022\xa0\xa0 \xa0being dizzy
\n\n\u2022 suddenly changing mood (suddenly angry, for example) is unconcentrated
\n\n\u2022\xa0\xa0 \xa0headache
\n\n\u2022\xa0\xa0 \xa0being tired
\n\n\u2022\xa0\xa0 \xa0be hungry
\n\nA hypo is about eating or drinking something quickly (not light). For example, six to eight tablets of grape sugar.
\n\nIf your blood sugar exceeds 10 mmol / l, you have hyper. That\'s what you notice:
\n\n\u2022\xa0Pee a lot
\n\n\u2022 Have a lot of thirst and keep it
\n\n\u2022 are tired
\n\n\u2022 sudden moodiness, getting angry quickly
\n\n\u2022 be sick or give up
\n\n\u2022 Everything feels annoying
\n\nThe body itself wants to lose too much sugar in the blood, through lots of pee. Many people continue to drink (but nothing sweet!) Helps. Also movement is good, then the blood sugar burns. If you are using insulin, you usually need to inject additional insulin.
\n\nSources
\n\nAbout OPEN INSULIN
\n\n\n\n', u'post_id': 6277, u'date': u'2017-05-15 09:37:31'}, {u'user_id': 4, u'title': u'Whoa', u'comment_id': 17808, u'content': u'
That post is heartbreaking, Winnie. And @Scigrades : welcome to Edgeryders! Looking forward to see your infographics.\xa0
', u'post_id': 6277, u'date': u'2017-05-03 13:04:36'}, {u'user_id': 3362, u'title': u'Some inspiration', u'comment_id': 15935, u'content': u'I came across this article:\xa0http://www.nbcnews.com/business/consumer/amp/desperate-families-driven-black-market-insulin-n730026
\n\nThe visual about blame struck me... I wonder how it is in Belgium, maybe something comes out of the discussion\xa0here. Can be worth adding as well.
', u'post_id': 6277, u'date': u'2017-05-03 05:29:03'}, {u'user_id': 3362, u'title': u'Local relevance', u'comment_id': 8561, u'content': u'I think the points we touched last Wednesday (link) offer a great starting point of what an infographic should look like for the audience in Belgium. Specifically around the need of education around prevention.
\n\nFor the graphics to be maximally useful, they should be easy to employ in a different context, for the teams in Oakland and Sydney.\xa0What are your communication needs, @dfko , the most pressing obstacles that could be resolved if your message reaches the right people?
', u'post_id': 6277, u'date': u'2017-04-28 08:09:00'}, {u'user_id': 8, u'title': u'Thrivability', u'comment_id': 24354, u'content': u'Several years ago @Jean_Russell curated a collection of essays around the theme of thrivability (available here) and recently published a book on how to build thrivable organisations.\xa0
\n\nThey may be helpful as a starting point? Maybe Jean has some advice to share?
', u'post_id': 845, u'date': u'2017-06-14 08:44:33'}, {u'user_id': 3643, u'title': u"Alright,\xa0I'll join! I'd also love to share another ", u'comment_id': 20133, u'content': u'Alright,\xa0I\'ll join! I\'d also love to share another idea \xa0
Hey @ewoudvenema you\'re welcome to join the call tomo Wed at 18:00\xa0where we meet new people and design together the event later this year around building the\xa0OpenVillage - whose concept by now you know super well :))
\n\nI can also prepare a short interview guide and we can have a one on one later to writeup the insights you mentioned the other week, if that\'s okay..
\n\nHope to see you tomo!
', u'post_id': 845, u'date': u'2017-06-06 19:37:54'}, {u'user_id': 3643, u'title': u'Talk', u'comment_id': 14633, u'content': u'Hey @Noemi, yes let\'s talk and see what\'s valuable to share with the Edgeryders community! I liked visiting Brussels too!\xa0
\n\nTell me when\'s best to connect!\xa0
', u'post_id': 845, u'date': u'2017-06-06 19:28:55'}, {u'user_id': 3, u'title': u'Starting from a blank slate or learning from the past?', u'comment_id': 6865, u'content': u'Hi @ewoudvenema it was nice meeting you at The Reef in Brussels a few weeks ago. I thought your experience at the Synergy Hub in Rotterdam is really telling and contains lesssons to keep when moving forward. We all stand to learn from them, as they point to what works and what doesn\'t in co-design within a community pretty aligned in values.
\n\nIf you ever feel like listing the most important things you\'ve learned in a few paragraphs for a read by other edgeryders, it would be super helpful. If I can help in any way let me know, I\'d be happy to have a skype and support documenting/posting them. It also helps the development of our common Reef!
', u'post_id': 845, u'date': u'2017-06-05 11:06:16'}, {u'user_id': 3596, u'title': u'Pivot!', u'comment_id': 33817, u'content': u'Hello everyone!
\n\nSince your inspiring\xa0and helpful\xa0contributes, we as a team, decided to update our project from the original idea\xa0pivoting it\xa0to the far more impacting new usage context. We also changed our name project in ResQ, we hope you\'ll like it\xa0
Following is our updated\xa0project\'s\xa0abstract\xa0which includes some of the ideas mentioned in the previous comments.
\n\nThank you!
\n\nResQ is an app for physicians working in emergency contexts, that digitalise the health information of patients, so to make them easily available for colleagues.
\n\nCurrently, the first aid provided to refugees arriving in Italy is effective in terms of solving the main health issues (healing of hurts due to the journey, or state of fever), but at the same time is not very efficient because of the superficial anamnestic research that physicians are compelled to make in such situations.
\n\nIn addition, the information gathered about the health state of each patient, are stored in simple paper sheets, preventing a further the potential of a pervasive sharing that a digital format would easily allow.
\n\nThe current way of working shows the following problems:
\n\nResQ is conceived to ease the communication among physicians (involved in critical context such as temporary hospitals and reception centers) regarding the health state of foreigner patients who don\u2019t know the language of the hosting country. In this way, the tool is designed for physicians, but the main benefits will come for migrating patients whose this services is dedicated to.
\n\nResQ is a mobile management tool that improves the communication among healthcare workers (especially physicians, but also volunteers, nurses etc etc...), getting as a result the reduction of the language barrier that very often doesn\u2019t allow foreign patient to fully explain their symptoms or their own pathologies.
\n\nThe personal pathological condition besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when there might be a language barrier.
\n\nResQ is conceived to to be used mainly during the period in which the migrant still doesn\u2019t own a \u201cCodice Fiscale\u201d (personal unique fiscal code), but only a STP card (Straniero Temporaneamente Presente), that makes her/ him able to benefit from the main national healthcare services (for 12 months maximum).
\n\nThe reception centers that provide the STP card and give the first medical assistance, have to deal with a very high number of people in a stressful situation that often lead to a superficial treatment.
\n\nIn this way we designed an agile gathering data tool that saves time and in few minutes would be able to fulfill a complete health history of the patients. Also, the digitalization of such a document would make possible an extensive sharing with colleagues that later will take care of the same patient.
\n\nTherefore the physician will have the chance to communicate autonomously among themselves without misunderstanding through the management tool.
\n\nThe tool we are designing will be developed in order to be accessible from the main devices available on the market. Therefore we envision applications possibly developed in their native languages as Java or Android and Objective-C foe iOS ambients.
\n\nEven though we believe a mobile tool might be most suitable solution for the specific usage context we are working on, we would like to provide also a multi-platform responsive app developed in HTML5.
\n\nThe cloud service might be developed in NodeJS, with database in MongoDB and MySQL.
\n\nUnder construction.
\n\nOpensource
\n\nWhat question\xa0
\n\nHow to help refugees in getting a more efficient healthcare service?
\n\nWhat problem\xa0
\n\nLanguage barriers often lead to misunderstanding and psychological weight for foreigner patients.
\n\nWhat solution\xa0
\n\nResQ is an app that connects physicians over common patients, providing a complete overlook to minimise language barriers.
\n\n@alessandro contini\xa0@silviad.ambrosio\xa0@ChiaraFrr\xa0@Costantino
', u'post_id': 33729, u'date': u'2017-06-13 22:29:46'}, {u'user_id': 3596, u'title': u'Interview Marta\xa0working in the immigration reception center in ', u'comment_id': 33805, u'content': u'Interview Marta\xa0working in the immigration reception center in Ancona(Italy)
\n\nGeneral information
\n\nName: Marta \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 Where do you live:Fabriano, Ancona, Marche(Italy) \xa0 Age: 29 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 \xa0 Role and position in the NGO: To be more precise, it is not exactly an NGO but cooperative.
\n\nWe are the first contact for those seeking international protection and medical and legal assistance. We are also providing additional services and programs such as art workshops, IT courses, Italian language and adaptation and integration courses. We have also been organizing educational workshops for instance FabLab Rinoteca woodwork workshop or training for welder, baker etc.
\n\nQuestions
\n\nHow would you describe the first reception process?
\n\nFrom the moment migrants arrive to Italy, more precisely to Sicily, they are being transferred to reception centers depending on the available places. The new legislation on the migrants placement implies transfer depending on the municipal availability in the non-emergency periods. The summer, for example, can be described as continuous emergency period because weather conditions make it easier to travel.
\n\nHow would you describe your working hours, do they change and if so, depending on what?
\n\nOur shifts and working hours are usually from 9 until 6, but also we always have on 24 hour call one or more persons, available to help if necessary. Working hours are not fixed but flexible and workers organize the by themselves depending on necessities.
\n\nWhat are the medical data that are being collected from the asylum seeker on the first reception?
\n\nOn the occasion of first encounter between reception center worker and the migrant, they are normally filling in the form, provided by county government, with personal data and information on health state. On their arrival in Sicily, they are being examined by the first aid team; the process usually consists in fever/temperature measurement, the mandatory tuberculosis test and the regular doctor checkup.
\n\nWhat are the checkups that are being performed on the first emergency (arrival to Italy)?
\n\nFirst Aid, for example treating wounds caused by the conditions of travel, fever and if serious problems are presented it is inserted in the migrant\u2019s info sheet and the record.
\n\nAre the doctors in charge of the first visit always the same or they change?
\n\nThe doctors are not being chosen by the reception center staff but they are so called STP doctors. This means that they are treating patients that are not covered by health insurance or they are general doctors with an independent office and not employees of the hospital. In Marta\u2019s experience they are usually not very thorough with the patients case and in fact once migrants are provided with health insurance they are not advised to consult STP doctors.
\n\nOn what criteria are doctors chosen?
\n\nMarta was not able to provide this information, contact directly a doctor to clarify this.
\n\nHow are the collected data being managed?
\n\nFirst step is filling in the form with all the personal data, history of previous diseases and therapies, also if if there were wounds or fever caused by the travel it is being noted. Often happens that this first form is not filled in because the first checkup is performed in a hurry and superficially. Afterwards, once the migrants are transferred to reception centers the staff receives the copy of this form and they add more info and more detailed and elaborated record on the migrant that is being sent to the municipality officials. This form is scanned and sent by email. The lack of a database is targeted as a problem as well as the management of hard copy records and documents.
\n\nWhat are the major problems during the doctors\u2019 visits?
\n\nA logistical problem is that there is no any information prior to the arrival of the migrants to the reception center in order to prepare better. They come by a bus and the staff is not informed neither on their medical state nor the nationality, sex and age in order to preogranize the visits and accommodation.
\n\n@alessandro_contini @silviad.ambrosio @ChiaraFrr
', u'post_id': 33729, u'date': u'2017-06-07 14:31:52'}, {u'user_id': 3143, u'title': u'Sounds great to me!', u'comment_id': 33800, u'content': u'I think it would be great to involve your friend from day one!
\n\ns/he would probably have a lot of precious insights that would be highly needed to implement the best user experience for such a scenario.
\n\ndid you maybe elaborated the\xa0concept a little further?
\n\nI would suggest to have a look at these
\n\nHello Alessandro,
\n\nthank you for your availability and for creating this possibility.
\n\nI find that implementing our app and the concept in the ONG sector dedicated to emergency situations is not only interesting and suitable, but needed and helpful. Since the app was initially designed to ease and facilitate both doctor and the patient in the transitory situations I was considering to contact and involve a friend working in the immigration reception center in Ancona to have more insight, information and clarify any doubts. Let me know what are your thoughts on this
We are currently working on the translation of the project and will be sending it as soon as possible.
\n\nOnce again, thanks for your comment and looking forward to hearing from you again.
', u'post_id': 33729, u'date': u'2017-05-20 13:45:04'}, {u'user_id': 3143, u'title': u'Hello + request + proposal :)', u'comment_id': 33771, u'content': u'Hello team doc.doc,
\n\nThanks again for sending in the application form for the MIR and for publishing your story here!
\n\nIf possible, may I ask you to quickly translate your concept to English, so that the Edgeryders community could eventually comment and contribute? Thanks!
\n\n(It doesn\'t have to be a detailed translation of all\xa0the content above, a couple of paragraphs highlighting the key aspects of your concept would do the job!)
\n\nTalking about the proposal,\xa0I like the idea of helping doctors communicating \xa0more efficiently with each other in order to help patients, as a consequence,\xa0in relieving the weight of their own personal pathological condition. Besides being a psychological kind of weight, for instance when a patient has to explain multiple times his/her condition to a series of different medical specialists, it could also lead to misinterpretation and diagnosis issues when for instance there might be a language barrier.
\n\nNow this leads to two different considerations:
\n\n1 Based on my design experience, it is extremely hard to convince workers in the standard medical field (hospital,\xa0primary care physicians, etc...)\xa0to adopt a new kind of CRM software for multiple reasons: regulations issues due to privacy and national laws, obligations in using a specific software, affection to a well known software in contrast to the commitment in learning a new one,(even when the new one has better user experience...\xa0)\xa0
\n\n2 Such a digital system/experience could be way more powerful when there is actually a language barrier and/or the patient itself is in a context s/he doesn\'t know very well how to swim in.
\n\nThis made me think of trying to change the context of the concept and switch to scenarios such as the activity of ONGs like Doctors Without Borders, or thinking at care issues\xa0in\xa0refugee camps on European soil\xa0at this present day.
\n\nI believe that re-thinking the service/app in terms of the specific needs in the scenarios above could lead to\xa0interesting solutions and could work for different reasons:
\n\nI suppose the physicians working in these scenarios would be more free to choose their own set of tools as long as they are effective in solving real problems quickly\xa0
I suppose they would generally\xa0meet patients very quickly, maybe one time only, and then address them to other physicians
It would solve the language barrier issue of the patient since the two physicians are communicating "in the background"
Of course all of these hypotheses would need validation through research in the field.
\n\nDo you think this approach could be of your interest and would you like to give it a try?
\n\nHappy to hear your thoughts about it
Meeting 07.06.2017 at\xa0Timelab, Ghent
\n\nPresent: @flinty | @BramDeJaegher | @GLS9000 | @ritavht |\xa0Wim |\xa0Simon |\xa0@Michielstock \xa0| @WinniePoncelet \xa0
\n\nNotes (can also be found\xa0on the Drive here)
\n\n-------
\n\n\xa0
\n\n\xa0
\n\nRita posted a list of things to order on the Drive here, as the samples (spotted plasmids) are about to arrive.
\n\nShee and Federica also posted some useful protocols.
\n\nBram: what is the lifetime of the plasmids when they arrive?
\n\nFederica: they keep a long time, but it\u2019s best to resuspend them and store in a -20\xb0C freezer. Part of them should be used to transform the bacteria and freeze those at -80\xb0C in a glycerol stock.
\n\nOpen Biolab has most things equipment/some consumables available to do the transformation, as well as storage. The option of getting an own -80\xb0C freezer (Wim knows of one) is not ideal right now - high electricity use and it\u2019s very big/heavy for just storing a few samples. It will be simpler to do it at a uni for now.
\n\nWe will need about \u20ac400 (minus materials we can find ourselves) to get started with the lab work. Rita should be able to order them and she will see which materials we already have/can get elsewhere. If you have something from this list to contribute, get in touch with Rita.
\n\nWinnie can get us underway with some of the money he got from the OpenCare Fellowship. Michiel will look into reusing leftover budget from iGem. Then the next iGem team can also use Open Insulin for their project.
\n\nSome thoughts on BL2 lab: as Open BioLab is not always open (they close over the summer), a backup option would be handy. Michiel and Wim will ask around. From October (if all goes to plan), we could use Wim\u2019s new lab if needed. Using a lab is mainly about permission, safety and legal reasons are no obstacle (see OBL).
\n\nFederica and Bram will put their heads together to come up with a road map for the science and lab work. Concrete milestones would make the plan better. A first step is already clear: replicating the Oakland work with the plasmids we receive. Although our work can be more useful on downstream processing, this way we gain experience, prove reproducibility and have a reference point for when we change the construct. After that, the roadmap and milestone should offer us some focus, as there are many options to test (different organisms, different linkers, microfluidics optimization, \u2026)
\n\nThere are already plenty of papers on the Google Drive, thanks to the work of the teams in Oakland and Sydney.
\n\n\xa0
\n\nOn testing multiple conditions: Wim mentioned the work of Peter Schotte with 3D printed caps for shaking flasks that are a simple, cheap way for changes in conditions. Bram: if we get the microfluidics device working, they could also be used for this.
\n\n\xa0Bram did research on the OpenDrop device, to figure out how to get started and the feasibility. His impression was that it\u2019s not so well documented in order to build one ourselves. We can however buy a finished device for \u20ac500.
\n\n\xa0
\n\nIn order to continue, we really need to find people with more knowledge, have a better view of the possibilities. We can use the hackathon in Amsterdam for this. There will be many experts present, as well as the chips of Digi.bio. We can try to do some of the experiments we will do with the plasmids, on the chips. Designing or working on the chip itself however, is not the goal or something we have the right skills for.
\n\n\xa0
\n\nWho wants to join us for the biohackathon? We can get 4-5 people together. You can reply in the thread here:\xa0https://edgeryders.eu/en/open-insulin-research-group/biohackathon-at-waag-society-8-9-july
\n\n\xa0
\n\nCard game idea for communication: the others were not present. Guido mentioned that the Diabetes Liga has a card game, worth checking out.
', u'post_id': 6373, u'date': u'2017-06-08 12:51:00'}, {u'user_id': 3702, u'title': u'hoping i will be part of this amazing ', u'comment_id': 24218, u'content': u'hoping i will be part of this amazing team
', u'post_id': 6360, u'date': u'2017-06-13 08:19:59'}, {u'user_id': 3, u'title': u'Hm, did we connect with them last year?', u'comment_id': 22248, u'content': u'Thanks for getting back on this one.. Looking forward!
\n\n@Gehan and @WinniePoncelet in so far as curation is concerned we promised to get back with other names to support the work, but we will need to have a process so that they come in when their skills are most valuable:\xa0have a look here? Courtesy of @Nadia and her contacts, and more to come\xa0<3
\n\n@ireinga do you remember if we reached out to the Soc Innovation Factory before LOTE5 last year? I know we talked about it..
', u'post_id': 6360, u'date': u'2017-05-30 21:59:23'}, {u'user_id': 3362, u'title': u'Thoughts', u'comment_id': 21073, u'content': u'I\'m back in action and following up on the call of Wednesday. The spreadsheets looks good and I\'ll be sharing my thoughts on the projects that fit the citizen science theme, to pick up the discussion. I\'ll also reach out to people/projects that I think might be interesting to participate in the discussion.
\n\nI\'ll also contact the people who have made proposals directly to flesh out concrete session ideas.
\n\nAs I was thinking about the proposal of handling\xa0data, I was reminded of a major Belgian organisation that supports social projects: Sociale Innovatiefabriek. They have a good overview of projects, plenty of expertise and are based in Brussels. Perhaps it would be interesting to involve them? Also regarding the idea to have a more solid local anchor for Edgeryders/The Reef. @Noemi | @Alberto
', u'post_id': 6360, u'date': u'2017-05-30 15:43:35'}, {u'user_id': 3, u'title': u'Ongoing exploration', u'comment_id': 17635, u'content': u'Hi @Gehan happy that you find it useful.\xa0
\n\nI see your point - the different (concrete and meta) levels for going about a session on care depend a lot on where participants come from. I think they are both valuable and there is a lot of flexibility in the format - from project demos to open\xa0conversations, to actual explorative/work sessions.
\n\n1) the more concrete and detailed ones\xa0would definitely benefit from curation to ask questions above the project\'s worthy\xa0achievements.\xa0
\n\n\xa02) the more meta and patterns discussions could use curation to get to a solid framing where others could plug in. A very useful example from a past event is a session which was prepared ahead like a collection of viewpoints on how communities organise around and steward material assets - people would be reporting from their own experiences, but coordinated ahead so that the facilitator could see how they fit into each other. There is\xa0documentation from it.
', u'post_id': 6360, u'date': u'2017-05-27 08:39:52'}, {u'user_id': 3613, u'title': u'Different levels', u'comment_id': 15609, u'content': u"Still feeling stupid for thinking the time difference worked the wrong way round!\xa0
\n\nThanks for the extensive notes. Good to be able to\xa0catch up. As I'm reading through - seeing multiple\xa0different levels; some getting in to quite a bit of detail and then bigger patterns, themes - kind of at a meta-level. All seem necessary. In your experience of running these events in the past - is there a useful way\xa0to work on multiple levels - perhaps reflecting them in the programming but also how the event/learning/outcomes are captured?
\n\nI should have things in place at my organisation to fill some of my current duties soon and will be more available to input.
\n\nCatch you at the call next week (correct time!) g
", u'post_id': 6360, u'date': u'2017-05-25 20:57:35'}, {u'user_id': 3, u'title': u'Your thoughts from yesterday? What next for you?', u'comment_id': 8674, u'content': u'@albertorey , @steveweaver , @Alex_Levene , @Shajara , @asimong , @Bernard ?
\n\n@WinniePoncelet and @Gehan , can we\xa0work on the spreadsheet to make sure all (ongoing and new) sessions are followed up with curation support and send in the required info? Your names are added in the Curators column (tentatively, but you can drop some, or shift them around).\xa0Feel free to contact people through their user profiles or direct email. \xa0From previous experience, I expect some will drop out, some will move forward. This is just a starting point.. You might want to consider pinning down your own (flagship) session based on your current proposals + bring forward new sessions led by your network/ other people who you will engage with the festival. Let me know how to help?
\n\n@Nadia can you let us know when other incoming curators are confirmed? Or just add them here Super thanks.
Hi @Gehan, it\'s a pleasure to meet you. You\'re welcome, these conversations are crucial and must be shared.
\n\nFor starters, reframing the problem in human-centric ways,\xa0technological solutions and its designers could develop\xa0a deeper understanding of the user\'s lives and their unmet needs. This will\xa0bridge the gap between product (solution) and the user population who would most benefit.\xa0Developing supporting systems that recognize the unique challenges of each patient, that means taking it to the community, and having them create the impact and play a major role.
\n\nFYI part 2 of this conversation forthcoming
', u'post_id': 577, u'date': u'2017-06-11 15:32:40'}, {u'user_id': 3613, u'title': u'curious...', u'comment_id': 8467, u'content': u'Hello @maria, thank you for sharing this conversation.\xa0
\n\nIt\'s important what you say about how we can become precious about the problem and lose sight of the people. There\'s something very meaningful in your description of the mother\'s response to technological solutions. Did\xa0the insight\xa0about the loss of human connection and sense of empowerment that can come with some forms of technology inform the next stage of the project? I\'m curious to learn more. Have you considered how we might\xa0design technological responses that generate more human connection rather than displace it?
\n\nThanks again for taking the time to post this.
\n\nGehan
', u'post_id': 577, u'date': u'2017-06-10 19:49:13'}, {u'user_id': 3310, u'title': u'thank you', u'comment_id': 15323, u'content': u'Hi @Noemi thank you. There is so much going on and is so interesting tracking and reporting between the theory and practice, online and offline.
\n\nMore ethnonotes coming soon..
', u'post_id': 862, u'date': u'2017-06-10 13:43:00'}, {u'user_id': 3, u'title': u'Wow, seriously?', u'comment_id': 8010, u'content': u'@Federico_Monaco so you\'re turning into quite a community manager and blogger, and nicely complementing the work which has been done online and then offline in opencare.
\n\nIt\'s through observers and active participants like you that we can make a few steps back and on the side to realise the "potentiality" of it, as Ezio would say :-)) \xa0So do you think @Rune \'s and your\xa0involvement in opencare can actually lead to coagulating a project around your ideas on patient centered assistive devices? No matter if that turns out to be the ambitious\xa0physical lab (WeHandU), the research paper or simply tinkering around WeMake.. I think it\'s valuable insight and thanks for allowing the rest of us to witness and process this as data to support other collaborations in the future. See you soon!\xa0
', u'post_id': 862, u'date': u'2017-06-08 13:43:17'}, {u'user_id': 3433, u'title': u'Right track.', u'comment_id': 20403, u'content': u'They sound like great ideas. Having professionals work with and educate kids and adults about equality, fairness, stereotyping, prejudice, scapegoating, gaslighting, etc is always a good thing. Workshops can be good if they are welcomed to a place and there is a strong willingness for them to happen.
\n\nGetting these important subjects onto school curriculums would be a very good outcome. I created an app in 2001 "Seeing Sense" that became part of the curriculum in the schools in Northern Ireland, when working with Mark Willett Design Associates. It was a usefull educational tool, but education is just a part of the solution. Changing attitudes and culture takes more. As you\'ve said organising and getting the conversation going at a community level is key, and getting famous/successful people to champion the cause would be a big help. And professional counselling service for individuals effected by these issues would help straight away, and also would be usefull along the journey as yet unknown challeges will surely appear.
', u'post_id': 857, u'date': u'2017-06-08 21:41:48'}, {u'user_id': 3680, u'title': u'how? fishing for ideas ', u'comment_id': 16621, u'content': u'Thank you for suggestions @Bernard\xa0I\'m glad to hear that things are really changing for the better and that has a lot of positive and good examples
\n\nWhat do you think about\xa0interactive workshops, psychologists, educators and sociologists playing with children so they can\xa0 adopt essential ideas that no one should mistreat them, that they should report any form of violence, when they grow up won`t allowe\xa0bad behavior in the name of\xa0love, oppression or degrading treatment from society or be abuse and suffer because they are poor?
\n\nTo organize webinars\xa0women can follow from home, or work,(\xa0as you know usually\xa0bullies isolated them from the world and friends) to obtain information, entrusted to others, sometimes it\'s a shame to talk with a close \xa0people and somewhat easier to turn to strangers...
\n\nTo organize workshops and lecturers to train women practical skills , make fund for\xa0scholarship to help women to get\xa0education, \xa0improve skills in order to obtain job easier, economically become independent, or\xa0\xa0learn how they can work from home
\n\nTo organize support groups in the villages because \xa0as well as smaller cities, seminars, give practical advice, different topics,\xa0famous and successful people can tell their stories of how they achieved success, to have overcome its crisis....
', u'post_id': 857, u'date': u'2017-06-01 10:00:30'}, {u'user_id': 3433, u'title': u'Rainbows in Ireland', u'comment_id': 11931, u'content': u'Hi @Branislava. Here in Ireland last year we had a refferendum on gay marriage and it is now permitted by law. We too were dominated by church, but things do change. The third level education system is pretty good here. Recently Teach Solas resource centre got up and running. I wasn\'t involved myself apart from enjoying the parades and voting on the referendum. I don\'t think the journey was easy, but attitudes have changed greatly here. I hope that change can spread. I will ask them a bit more about their journey, maybe there are clues as to how? and where to start? One thing I remember is that the rainbow was used very strongly during campaigning.
', u'post_id': 857, u'date': u'2017-05-31 17:02:00'}, {u'user_id': 4, u'title': u'How?', u'comment_id': 10011, u'content': u'Hello @Branislava , welcome from me too.\xa0
\n\nThis is a pretty tough issue. I am no expert on Slavic cultures (I myself am from Italy) but we do hear that women and minorities have a harder time as you go farther East.\xa0
\n\nIt is also a very important issue. For human rights, for a better economy, for plain human decency.
\n\nHave you got any idea of where to start? I know that there are many players looking at the problem, and there is money available for people who can make a credible case that they have a solution. I think Edgeryders might be prepared to help a bit... but you would need to come up with an idea, even a sketchy one.\xa0\xa0
', u'post_id': 857, u'date': u'2017-05-31 16:35:49'}, {u'user_id': 3422, u'title': u'More on fly fishing..', u'comment_id': 29539, u'content': u'There are two streams in Brussels that might be a better stream to investigate than the Seine:Maalbeek,and Woluwe as well as several ponds.
\n\nThere seems to be fishing opportunities in Brussels in Laeken: (lespecheurslaekenois.com/ind...\xa0) and outside of Brussels in Wallonia (peche.tourisme.wallonie.be/p...).
\n\nIt might be good to partner with Michieles Fishing Center in Brussels and other organizations mentioned in angloinfo.com for more specific assistance finding bodies if water to investigate including water quality\xa0and fly fish.
', u'post_id': 6372, u'date': u'2017-06-08 13:28:26'}, {u'user_id': 3422, u'title': u'The tug is the drug!', u'comment_id': 28454, u'content': u'I think it would be great to work with schools and underserved kids! Fly fishing is based on using flies that duplicate the insects and bait fish found in bodies of water. By understanding and looking at the fauna found in local streams and by discussing the fragility of that environment, student can make connections between their actions and how government and industrial actions affect their local bodies of water. It is important to make a connection between the students and their environment. This can be done by simply walking into a stream and turning over some rocks to see what is clinging to it.
\n\nfly casting and tying flies are other activities that can be done to connect to this. There is a Royal Casting Club in Brussels plus other organizations that\xa0could help us with these activities.
\n\nMore activities is also possible to link to other schools through Zoom and Hangout.
', u'post_id': 6372, u'date': u'2017-06-07 20:55:37'}, {u'user_id': 3362, u'title': u'Demo & edu session', u'comment_id': 27447, u'content': u'I think a demo session would be nice and can tie in with more educational content. Finding a school should be doable, if it\'s on a Friday. Weekends can work as well, then you could involve an NGO working with underprivileged groups. Practically, what more would be needed for such a demo @albertorey ?
\n\n@NiekD will also share his personal take on education as care online soon. @Damiano also mentioned his interest in education and linking it with biohacking. When the discussion gets going, we can see how we shape a session (or several) from this.
\n\nMeanwhile I have been in contact with people on water quality, a response is on its way.
', u'post_id': 6372, u'date': u'2017-06-07 07:05:00'}, {u'user_id': 3, u'title': u'Hm, an idea', u'comment_id': 27314, u'content': u'@albertorey and @WinniePoncelet \xa0: you two are of course more qualified to judge this: but I have a feeling this kind of OpenVillage activity could birthe more community collaboration around educational strand of opencare. Is there a way to organise a demo and a partnership during OpenVillage with a local school ?\xa0
\n\nIf so, can you make the case in short for fly fishing as environmental stewardship? (the\xa0full story and argument...)
\n\nIn this works, I would keep your other proposal, Alberto, but set it aside for now - the panel on advocacy for clean waters and do it if it gathers more experts around it.. there is still time and anyway now we are full on promoting the opencare stories so far, so I expect new people and knowledge to join over the summer (by the way are you registered for #CountOnMe\xa0to share these stories?)
', u'post_id': 6372, u'date': u'2017-06-06 19:07:09'}, {u'user_id': 3422, u'title': u'fly fishing at OpenVillage?!', u'comment_id': 26938, u'content': u'As I mentioned, we provide a three day conference here in the States called "Children in the Stream Conference" (www.childreninthestream.com). The conferences use fly fishing as the thread that links biology, physics, social studies, literature and art. We use fly fishing the activity to "hook" the children in the schools into going outside and introducing these topics in the classroom and in the field. The fly tying and related topics also nurtures a sense of environmental stewardship at a young\xa0 age while getting chidren off computers and providing alternatives ways to engage socially and with their environment (http://richardlouv.com/books/last-child/). Fly fishing has also been used to treat soldiers with PTSD. Here\'s an interesting article: http://neuro.hms.harvard.edu/harvard-mahoney-neuroscience-institute/brain-newsletter/and-brain-series/fly-fishing-and-brain....and it has been also used for women recovering from breast cancer (https://castingforrecovery.org/).
\n\nWe could provide fly fishing and fly tying workshops at the OV conference while also discussing how to integrate it into curriculums and we could also have it sponsored by local fly shops in Brussels...it\'s also a good way to do some outreach in the community which is always a good idea I think. (http://www.pechemouche.be/michieuk.htm). There are a lot of possibilities for reaching out to fly fishing clubs also (http://www.waderson.com/water_details.php?pc=15&setthewater=76).
', u'post_id': 6372, u'date': u'2017-06-05 20:07:10'}, {u'user_id': 3, u'title': u'Yes!', u'comment_id': 24832, u'content': u'I really like AdaptiveDesign because it\'s ongoing - whereas the RSA awarded ideas in initial stage. For #HackOnWheels I think the WeMake crowd in Milano could tell us if there is someone interested in making a connection with an opensource indoor wheelchair for disabled?\xa0
\n\n@silviad.ambrosio @alessandro_contini some of your students or designers you met through OpenRampette? (a project to collaborate with Milano shop owners to increase accessibility through\xa0mobility ramps- not indoor though..).
\n\nOr @Gehan do you have a connection already with Adaptive Design or\xa0RSA?
', u'post_id': 6372, u'date': u'2017-06-06 18:17:17'}, {u'user_id': 3613, u'title': u'Some suggestions - if relevant, which theme?', u'comment_id': 23379, u'content': u'Hi there,
\n\nSlowly able to\xa0get more engaged with the process. There\'s still much I\'m getting my head round.\xa0
\n\nThe RSA is an innovative organisation (21st C enlightenment is their tag line). One\xa0of entrants\xa0in their Designing Our Futures - Student Design Awards that might be of interest here. A project titled Curve in response to the #HackOnWheels brief.\xa0
\n\n\n\nAlso are Edgeryders/OpenCare community already linked in with Adaptive Design (assistive products/cardboard/cheap materials/open source design)? I think it started in New York but I understand there are initiatives\xa0here in Glasgow now too.
\n\ng
', u'post_id': 6372, u'date': u'2017-06-03 10:50:52'}, {u'user_id': 3, u'title': u're: Damiano organising a roadmap', u'comment_id': 21518, u'content': u'Hey @Damiano since you asked on email\xa0I figured I\'d reply here:
\n\nEdgeryders organised pretty much every year since 2012 community gatherings called Living On The Edge (LOTE1, ... LOTE5). Each lote had an overarching theme (youth transition, community stewardship, learning from failures..).\xa0This is supposedly LOTE6 with the health and social care banner. What makes it different is that\xa0it\'s more a festival than a conference. Many people are tired of conferences, so the more hands on it goes, the better imho. How does it sound to you?
\n\nLote4 is a favourite of mine so far:
\n\n\n\nFor organisational details and to give you an idea, here are the minisites:
\n\n\n\nIn the "Join a Team" / or "Contribute" menu items if you scroll down the pages you can see that we had people joining\xa0organisational teams.. do you think we should have an equivalent this year? So far participants get tickets when they complete tasks we post in this group, but I\'d so welcome your\xa0help to structure this process some more. Actually we can organise the next community call just around this - effective open team work.\xa0
\n\nTo answer your question, there is no one person "in charge" of promo or comms.
', u'post_id': 6372, u'date': u'2017-06-01 14:15:46'}, {u'user_id': 3, u'title': u'Signup to #CountOnMe list ', u'comment_id': 16678, u'content': u'How do we keep up to date and contribute from now until the Festival? A few helpful links I mentioned during the call :
\n\n1) All the live updates, discussions and documentation about the festival organising happen\xa0here\xa0in a discusison group. This wiki is also assigned to\xa0the group.
\n\n2) We are each spreading stories and Festival news to allow more people to find the sessions and connect with other participants.\xa0It\'s a quick routine\xa0and it\'s proven effective in doing network outreach. You can sign up here to get the updates: http://eepurl.com/bNtfZj (cc @Gehan checking if you are receiving/sharing the updates?)
', u'post_id': 6372, u'date': u'2017-06-01 10:34:00'}, {u'user_id': 3422, u'title': u'Interesting 31/5 community call', u'comment_id': 10162, u'content': u"I enjoyed today's community call. There always seems to be a diverse range of conversations. I look forward to further discussions as we iron out possible themes related to education, community outreach, water, citizen science, etc. and a format to encourage interaction by participants.
", u'post_id': 6372, u'date': u'2017-06-01 09:19:00'}, {u'user_id': 3, u'title': u'"Independent footcare clinic": change title of your story?', u'comment_id': 7915, u'content': u'Hi @Michael_Dunn and welcome! I think that important detail\xa0in your story "footcare clinic" will make you and your work easier to be found by other edgeryders around.\xa0
\n\nI looked\xa0up details about the project\xa0and found your crowdfunding campaign page.. how come you stopped at food care as a way to describe it best, even though I see you provide many other basic first aid - medical supplies, tea etc.
\n\nIn the past year we met many people who do relief, aid, skilling up\xa0work with regugees.. most of the projects are local scale\xa0- the Orange House in Athens (15 residents and 50 people around to receive some services), a Refugee 2 Refugee Solidarity Call Center\xa0in Thessaloniki, informal and bottom up,\xa0and crowdfundedfunded through\xa0an international campaign.. or ad hoc backpacks packing\xa0to welcome people in Kos Island, Lesbos..\xa0and beyond.
\n\nMost of them point at the need for better\xa0coordination among community leaders, citizens\xa0donors, organisations,\xa0and other businesses and organisations in the ecosystem..\xa0What has been a major challenge for you as you went on the road?
', u'post_id': 860, u'date': u'2017-06-08 10:59:39'}, {u'user_id': 3310, u'title': u'i surely will', u'comment_id': 28457, u'content': u'Thanks!
\n\nAt the Department of Medicine of the University of Parma we are collaborating quite a lot with foreign countries.
\n\nI will contact you.
', u'post_id': 686, u'date': u'2017-06-07 13:30:33'}, {u'user_id': 3639, u'title': u'Great platform for connecting like -minded people ', u'comment_id': 27796, u'content': u'Dear Monaco,
\n\nyour concept is really awesome and supercool.Using technology to reach out to the world with sustaibale E-health solutions in schools, hospitals and community events. With this great resource, i think quality information will be accessible for people and this will help save lives.. Good job, i am very impressed. Many of us will definitely love to collaborate with you to make the concept widely known especially in Africa. \xa0You could reach out to mbotiji@gmail.com. Thanks
', u'post_id': 686, u'date': u'2017-05-24 00:36:57'}, {u'user_id': 3310, u'title': u'Hi @Rune,\n\njust got on this comment now. Great! ', u'comment_id': 26948, u'content': u'Hi @Rune,
\n\njust got on this comment now. Great! Let\'s get in touch.
\n\n', u'post_id': 686, u'date': u'2016-11-24 18:51:41'}, {u'user_id': 3331, u'title': u'Goal or means', u'comment_id': 26019, u'content': u'Hi, @Federico Monaco\xa0 seems supercool. \xa0How could you see a collaboration with thE WeHandU\xa0initiative?
', u'post_id': 686, u'date': u'2016-09-29 13:27:41'}, {u'user_id': 3310, u'title': u'event: date & tech', u'comment_id': 24673, u'content': u'Hi @Noemi and thank you for your input.
\n\nAt the moment i think Live hangout might do fine, or...do you have any suggestion?
\n\nAbout the date...could be by the end of the month, like monday 27 for instance..Next week i will schedule it better.
\n\nHope to get feedback and some interest about these issues..
', u'post_id': 686, u'date': u'2016-06-16 04:11:08'}, {u'user_id': 3, u'title': u"Let's see who's around for the webinar..", u'comment_id': 22404, u'content': u'Ping @markomanka maybe he\'s interested or\xa0can connect us to someone?
\n\nAlso, Federico you might want to check if @jdossou80@yahoo.com\'s project\xa0of community mobilizing and raising awareness around cardiovascular diseases might be suited to cover at least part of the webinar.
\n\nCount me in for helping prepare\xa0it. Do you have a preferred tech for event delivery?\xa0
', u'post_id': 686, u'date': u'2016-06-14 12:07:46'}, {u'user_id': 3310, u'title': u'WEBINAR - e-patients & Health Mobilizations on the Internet', u'comment_id': 21418, u'content': u"I'm seeking contributions, participants and co-organizers for a webinar at the end of the month about discussing on e-patients and online communities on healthcare issues and forms of activism, networking and engagement of patients, citizens, makers, etc.. in research and social shaping of medical and healthcare technology. Anyone interested is welcome in co-designing or sketching the best formula for such a live event!
\n\nThank you
", u'post_id': 686, u'date': u'2016-06-13 09:38:35'}, {u'user_id': 3310, u'title': u'about Additive Manufacturing and 3D print for healthcare', u'comment_id': 15268, u'content': u'At the end of january, the STOA (Science & Technology Office Assessment of the European Parliament) hosted a workshop about the study of the "Impact and Potential of collaborative Internet and additive manufacturing technologies". There are many clues and references about 3D printing development, trends in the field of education and healthcare. The possible scenarios are depicted thanks to a DELPHI-like study involving experts from all over Europe.
\n\nhttps://www.youtube.com/embed/I3kzq9lJ67E
\n\n\n\nThe full study on The Collaborative Economy is available in english.
\n\n@Noemi\xa0 @Costantino \xa0 @Alberto
', u'post_id': 686, u'date': u'2016-05-31 09:02:21'}, {u'user_id': 3310, u'title': u"Thank you for your comment @Noemi\n\nI'm not teaching ", u'comment_id': 11219, u'content': u'Thank you for your comment @Noemi
\n\nI\'m not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see..
\n\nUnfortunately the\xa0 community interactions are the goal and not the mean. I\'m doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus.
\n\nThe idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I\'d love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.\xa0 What about starting in June talking about "e-patients and EHMs"? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist.
', u'post_id': 686, u'date': u'2016-05-30 12:52:37'}, {u'user_id': 3, u'title': u'The OpenCare for proper educational learning', u'comment_id': 8059, u'content': u'Hi again @Federico_Monaco, wow it struck me to see similarities in our approaches - the open approach to community learning in particular, and the focus on process. It seems you\'re more interested in teaching students collaborative practices than growing their knowledge of healthcare, which should follow naturally\xa0as an outcome (by the way do you measure that in any way?).
\n\nI have looked for the community interactions but the only space I found was this one (empty?)\xa0https://puntozero.github.io/community.html Should I go somewhere else?
\n\nOne last point for now, your timeline follows closely OpenCare as well. Is it possible for non-registered students to participate in the webinars? If so, we might consider partnering up - as many\xa0community\xa0members here speak Italian and could be interested to join.
', u'post_id': 686, u'date': u'2016-05-30 12:08:00'}, {u'user_id': 3682, u'title': u"Community Based Organizations (CBO'S)", u'comment_id': 14771, u'content': u"Dear Noemi, Hi......
\n\nFirst of all, i am so pleased and appreciate your keen interest to boost up every member of Edgeryders. Actually, I did PhD in Agricultre with specialization\xa0in food security and water management. During my doctrate research at plant breeding institue, The University of Sydney, Australia, I got a variety of experience in food security and economic development. Rather to be a professional, i am proud to be a social worker. For this purpose, tried my best to serve vulnerable community with ultimate objective of livelihood as well as food security. \xa0The best example from community, launching a rapid livelihood efforts through community based organizations (CBO'S). Yes we got much fruitful result from expectation only with the help of community and this project. \xa0Please keep in touch in future for new story about community based on Food Security, poverty eliviation and livelihood management practices.\xa0
", u'post_id': 855, u'date': u'2017-06-07 13:22:54'}, {u'user_id': 3, u'title': u'Example of community based activity?', u'comment_id': 6903, u'content': u'Hi @saeed.qaisrani and nice to meet you! I see you\'re a social worker, which means you work closely with communities - with the very people affected by the floods.. Myself I am a community manager and one of the things I like the most about my work is being in direct touch with people\'s experiences - very personal ones.
\n\nCan you tell us more about the kitchen gardens and how people were directly involved? More than "beneficiaries", I assume they had their own ideas and skills to offer as solutions for Layyah, right?
', u'post_id': 855, u'date': u'2017-06-05 17:31:08'}, {u'user_id': 3597, u'title': u'AllergoKi project - ENG version', u'comment_id': 29966, u'content': u'1 - SEARCH, ORDER AND EAT YOUR SAFE FOOD
\n\nScenario:\xa0Some people with food allergy want to go out for dinner
\n\nProblem:\xa0People with food allergy often feel uncomfortable when they have to explain their health state to the restaurant\'s staff
\n\nSolution: We design an application mobile and a website UX-UI, to allow people with food allergy to:
\n\nAnnotation
\n\nA list of 50 startups changing food business:
\n\nhttp://www.economyup.it/startup/4352_food-50-startup-per-capire-come-cambia-il-business-del-cibo.htm
\n\n++++++++++++++++++++++++++++++++++++++++++++++++++++++
\n\n2 - BE AN ALLERGO-RISTO
\n\nScenario: Restaurant join the system
\n\nProblem: Staff must be trained and educated on the needs of people with food allergies and on the risks of non-compliance with food safety management rules
\n\nSolution: We will create:
\n\nAnnotation
\n\nNo profit association Food Allergy Italia, Padova, since may 2002 protect food allergy people\'s health. F.A.I. underline how problematic is eating in a restaurant for people with food allergy, offering the chef card as solution.
\n\nhttp://www.foodallergyitalia.org/ita/page.php?cat=primopiano&id=1
\n\nSurveys conducted by Food Allergy Italia and Cork SAFEFOOD Ireland about effects of Regulation (UE) n. 1169/2011, to clarify if the law has brought benefits to people with food allergy and their family members, especially about the restaurants\' ability to serve safe food.
\n\nhttp://www.foodallergyitalia.org/ita/page.php?cat=news&id=2&item=122
\n\n++++++++++++++++++++++++++++++++++++++++++++++++++++
\n\n3 - TAKE CARE OF ME!
\n\nScenario: A person with food allergy book a dinner at the Allergo-Risto with his friends
\n\nProblem:\xa0Meal is served respecting the food safety rules; unfortunately his friends don\'t know these rules, so the food is contaminated by allergens. The final result isn\u2019t ailment for the allergic person.
\n\nSolution:\xa0Using easy-understandable drawings, realized on different supports, to inform diners about behaviors that should contaminate food ( for example: using the same fork to taste allergic people\'s food). The goal is to let friend and family members understand the problems of people with food allergy.
\n\nAnnotation
\n\nVideo made by EFSA, explaining in a scientific and easy to understand way what are food allergies:
\n\nhttps://www.youtube.com/watch?v=yqJQVsY24LU
', u'post_id': 824, u'date': u'2017-06-07 09:22:19'}, {u'user_id': 3143, u'title': u'Ottimo!', u'comment_id': 29084, u'content': u'Ciao @LitZAZI
Grazie della ricerca e scusate il delay.
\n\nMi sembrano direzioni molto interessanti, in particolare i temi 1 e 2.
\n\n(Forse il tema 3 in qualche modo potrebbe essere integrato nel 2)
\n\nDavo un\'occhiata ai link e pensavo che potrebbe essere molto utile avere uno scambio con la F.A.I., per la loro esperienza diretta ed eventualmente per accedere al loro network.
\n\nIl loro sforzo e\' notevole, forse potrebbe essere un po\' piu\' orientato al design
PS: magari iniziamo a "switchare" verso l\'inglese in modo da coinvolgere la community di edgeryders nella conversazione
', u'post_id': 824, u'date': u'2017-05-29 11:02:00'}, {u'user_id': 3597, u'title': u'Da AllergoKi a Allergo-risto. Nuove considerazioni', u'comment_id': 27826, u'content': u'Ciao a tutti! @alessandro_contini \xa0e @Costantino
\n\nDopo esserci confrontati e vista la complessit\xe0 del sistema che avevamo pensato inizialmente, abbiamo deciso di concentrarci su 3 aspetti che prevedono un minor utilizzo di tecnologia.
\n\n1 - SEARCH, ORDER AND EAT YOUR SAFE FOOD
\n\nScenario: la persona con allergia alimentare vuole recarsi presso un ristorante per consumare un pasto fuori casa.
\n\nProblema: persone con allergie alimentari si sentono a disagio nel dover spiegare al personale di sala il loro stato di salute.
\n\nSoluzione: studiare la UX-UI di un\u2019applicazione mobile e di un sito internet con l\u2019obiettivo di fornire alle persone allergiche la possibilit\xe0 di:
\n\nNote di approfondimento
\n\nElenco di 50 startup che stanno cambiando il business del cibo: http://www.economyup.it/startup/4352_food-50-startup-per-capire-come-cambia-il-business-del-cibo.htm
\n\n2 - BE AN ALLERGO-RISTO
\n\nScenario: Il locale ristorativo aderisce al sistema.
\n\nProblema: Lo staff deve essere formato e istruito sulle esigenze delle persone con allergie alimentari e sui rischi derivanti dall\u2019inosservanza delle regole di gestione della sicurezza alimentare.
\n\nSoluzione: Creare un kit di comunicazione contenente:
\n\nNote di approfondimento
\n\nL\'associazione no profit Food Allergy Italia di Padova da maggio 2002, si propone di tutelare esclusivamente la salute delle persone affette da allergie ed intolleranze alimentari sue socie.
\n\nF.A.I., nel suo materiale informativo, mette in risalto il problema di mangiare fuori casa per una persona allergica offrendo come soluzione la Chef Card.
\n\nhttp://www.foodallergyitalia.org/ita/page.php?cat=primopiano&id=1
\n\nSondaggio di Food Allergy Italia e un\u2019associazione irlandese di Cork SAFEFOOD sugli effetti del Regolamento (UE) n. 1169/2011 per determinare se la legislazione ha portato benefici alle famiglie e ai pazienti che soffrono di allergie ed intolleranze alimentari, in particolare sulla capacit\xe0 dei ristoranti di servire alimenti sicuri
\n\nhttp://www.foodallergyitalia.org/ita/page.php?cat=news&id=2&item=122
\n\n3 - TAKE CARE OF ME!
\n\nScenario: Una persona allergica prenota la cena presso un Allergo-risto dove si reca con un gruppo di amici.
\n\nProblema: La pietanza viene servita nel pieno rispetto delle norme di sicurezza alimentare, di cui purtroppo gli amici non sono a conoscenza: pertanto questa viene contaminata da allergeni, con conseguente malessere della persona allergica.
\n\nSoluzione: Attraverso illustrazioni di immediata comprensione, distribuite su vari supporti, informare i commensali dei comportamenti a tavola che potrebbero contaminare le pietanze (es.: usare la propria forchetta per assaggiare gli alimenti presenti nel piatto di una persona allergica). L\u2019obiettivo \xe8 sensibilizzare a questa problematica le persone vicine all\u2019individuo allergico.
\n\nNote di approfondimento
\n\nVideo realizzato da EFSA che spiega in modo scientifico ed intuitivo cosa sono le allergie alimentari:
\n\nhttps://www.youtube.com/watch?v=yqJQVsY24LU
', u'post_id': 824, u'date': u'2017-05-23 16:21:23'}, {u'user_id': 3597, u'title': u'AllergoKi - IoT e le allergie alimentari - APP e gadgets', u'comment_id': 26063, u'content': u"Progettazione dell'App e di un gadget del kit
", u'post_id': 824, u'date': u'2017-05-03 16:24:12'}, {u'user_id': 3597, u'title': u'AllergoKi - IoT e le allergie alimentari - APP e gadgets', u'comment_id': 25155, u'content': u"Progettazione dell'App e di un gadget del kit
", u'post_id': 824, u'date': u'2017-05-03 16:25:17'}, {u'user_id': 3143, u'title': u'focus progettuale', u'comment_id': 24195, u'content': u"Ciao Nicoletta + Monica,
\n\nGrazie per aver caricato lo schema, ora l'idea progettuale e' sicuramente piu' chiara!
\n\nNon vi nascondo che mi sembra moltissimo lavoro, e rispetto alla vostra richiesta nella application di partecipare alla MIR per 2 settimane\xa0mi sorge spontanea una domanda: avete gia' pensato a focalizzarvi su una delle varie parti del progetto? se si quale?
\n\nGrazie!
", u'post_id': 824, u'date': u'2017-05-02 14:13:01'}, {u'user_id': 3597, u'title': u'AllergoKi - IoT e le allergie alimentari', u'comment_id': 20827, u'content': u'', u'post_id': 824, u'date': u'2017-05-01 13:43:40'}, {u'user_id': 3597, u'title': u'sistema', u'comment_id': 15696, u'content': u'Ciao @ChiaraFrr\xa0 scusa se ti rispondo solo ora. a breve caric\xf2 il file con la spiegazione sistema che abbiamo in mente. Grazie. Buona giornata.
', u'post_id': 824, u'date': u'2017-05-01 09:07:21'}, {u'user_id': 3597, u'title': u'AllergoKi - IoT e le allergie alimentari', u'comment_id': 11549, u'content': u'Ciao Chiara, ti condivido il file del\xa0\u201csistema\u201d visivo/tecnologico". In caso fammi sapere se servono altre delucidazioni. Grazie Buona giornata. Nicoletta
\n\n\n\n', u'post_id': 824, u'date': u'2017-05-02 10:45:29'}, {u'user_id': 3002, u'title': u'Storytelling dritto al punto! Approfondiamo..', u'comment_id': 8387, u'content': u'Ciao Nicoletta e ciao Monica ( @LitZAZI )!
\n\nSono Chiara, faccio parte di WeMake e mi occupo anche del progetto opencare Maker in Residence.
\n\nPotreste aiutarci a capire meglio che cosa pensate di progettare, anche a livello teorico, per entrare maggiormente nel merito della vostra soluzione (creare un \u201csistema\u201d visivo/tecnologico nei luoghi di ristorazione per garantire agli intolleranti un ambiente e rilassato e conviviale)?
', u'post_id': 824, u'date': u'2017-04-27 13:44:10'}, {u'user_id': 137, u'title': u"@Branislava and @Noemi, unfortunately, i haven't been south ", u'comment_id': 14745, u'content': u'@Branislava and @Noemi, unfortunately, i haven\'t been south from Slovenia - I know a bunch of progressives from the Balkans, but sadly none of them is strictly dealing with LGBTQ rights. If I come across something interesting, I will let you know - If you want to work with really good organizations, I would suggest checking Rutgers. In Poland, we have a wonderful group called Ponton. My sex educator friend always said the best places for sex ed are Netherlands and UK (I guess France and Germany are also pretty wonderful), so I would do more digging there.\xa0
', u'post_id': 858, u'date': u'2017-06-07 09:20:08'}, {u'user_id': 3, u'title': u'What about working with a group already doing awareness raising?', u'comment_id': 12293, u'content': u'@Branislava I assume that there are at least a few organisations working to disperse some of the myths and less informed behavior in the population.
\n\nSometimes a good way to begin if you want to do social work could be to set yourself up as a collaborator of an existing NGO or activist group whose work you admire. You could start as a volunteer or even\xa0get a part time job? Or try an EVS internship\xa0which at least covers living costs? It\'s not easy to get started, but from my own and friends experience it take a little personal investment - of time, money, learning etc. whatever you have available..
\n\n@Natalia_Skoczylas maybe you have friends in the region or advice for her?
\n\nPS Branislava, your ticket to the #OpenVillage festival is coming up via email, hope you can make it!!
', u'post_id': 858, u'date': u'2017-06-06 18:54:01'}, {u'user_id': 3680, u'title': u'answer', u'comment_id': 11895, u'content': u'Unfortunately I currently do not work, actively looking for a job, I wish I had a project, I have lots of ideas, but I have a problem to realize them, even when I worked whenever I had the initiative, I was told do as the boss says\xa0, (proverb: ties horse as the boss says even if you and the horse die).
\n\n\xa0@Noemi\xa0, yes, you\'re right, these are the areas that interest me, I\xa0think that we have to actively take part in\xa0solving this\xa0problems, especially young people should engage.
\n\nAbortions\xa0are legal, but there is still a condemnation of women who decide to have an abortion, by doctors, partner, society, which is totally stupid woman\'s right is to do with her body what she consider is the best.
\n\nVery little is done on education, large number of abortions, legal and illegal, women should be informed that this is not a form of contraception, and that repeated\xa0abortions are harmful to health, the number of adolescent pregnancies is rising.\xa0Awareness and\xa0availability of contraceptives, pills for the day after and abortion with medication, are crucial.
\n\nYou \xa0are well informed, yes\xa0young people were in the streets, dissatisfied with the elections but they got tired and gave up,\xa0it is easier to simply go somewhere abroad, looking for a job, although it is not easy,(\xa0language,habits, traditions, family, friends, problem with visas, work permits.... ) than\xa0to stay and fight,\xa0brain drain is\xa0huge issue.
', u'post_id': 858, u'date': u'2017-05-31 15:58:27'}, {u'user_id': 3, u'title': u'Are you working on a project at the moment?', u'comment_id': 9882, u'content': u'Hey @Branislava welcome to edgeryders. I read all your three recent posts and it comes across very clearly that you are interested in historical and cultural injustice and human rights - whether women, LGBTQ and the like.\xa0If you know @Natalia_Skoczylas you probably have read about illegal abortions performed out of the institution\'s sight in Poland.. Is the situation similar in Serbia?
\n\nFrom your style of writing, it seems to me you\'re an activist, or..? I wouldnt be surprised, nowadays and in post election Serbia most progressive young people are in the streets right? But do you have a project which others in edgeryders can support you with advice or their own experience?\xa0
', u'post_id': 858, u'date': u'2017-05-31 14:59:24'}, {u'user_id': 3, u'title': u'Heard of Adaptive Design?', u'comment_id': 17195, u'content': u'This just came in via another edgeryder - it might be easier for WeHandU to build on existing models than start from scratch, and these guys started in the US but support replication of their model. Have a look here?\xa0
', u'post_id': 835, u'date': u'2017-06-06 18:38:53'}, {u'user_id': 3634, u'title': u'WeHandU - Kick off Event', u'comment_id': 14118, u'content': u'Hi @Noemi!
\n\nThe kick off event had a good start. During the\xa0first meetings we gave the patient some specific knowledge about 3D printing technology; now we are more focusing on teaching how to use a 3D CAD (specifically OnShape) to get from the idea to the 3D model. The patient is really interested and is actively participating, asking for more and more: this is a great success! Our priority is to keep the patient engaged and to give them all the tools for developing their own ideas (and this patient has A LOT of ideas in mind).
\n\nThanks for the support!\xa0
', u'post_id': 835, u'date': u'2017-06-05 08:18:58'}, {u'user_id': 3, u'title': u'Did the kick off event happen?', u'comment_id': 6497, u'content': u'Hi @Frankie_Bortot ! I somehow missed this post but Rune was telling me that the work is progressing..
\n\nI was in Milano in November last, with the opencare team, and I know that the priority was to get WeHand U started somehow, and that coordination of a network is a large task for a small team.\xa0But buillding a prototype, as small as it were, could be realistic. InPe developed with WeMake\xa0community seemed to be an example of a good approach, especially because it was captured on video too, so people could see what it is actually about.\xa0What is your priority at the moment?\xa0
\n\nWaving from Brussels, and looking forward to meet in person this autumn when I\'ll be back in Milano,
', u'post_id': 835, u'date': u'2017-06-03 07:36:04'}, {u'user_id': 3674, u'title': u'Ciao Francesco,\xa0\n\npuoi\xa0visualizzare il documento in alta qu\xec!\xa0 ', u'comment_id': 17173, u'content': u'Ciao Francesco,\xa0
\n\npuoi\xa0visualizzare il documento in alta qu\xec!\xa0
', u'post_id': 842, u'date': u'2017-06-06 12:40:32'}, {u'user_id': 3185, u'title': u'Accessibilit\xe0.', u'comment_id': 14500, u'content': u'Ciao
\n\nRiusciamo a rendere accessibile il diagramma, magari tramite una opzione di ingrandimento in una finestra indipendente oppure dando la possibilit\xe0 di scaricarne una versione possibilmente "parlante", in modo tale da complementare quanto scritto?
\n\nGrazie
Ciao a tutti,\xa0
\n\nAbbiamo iniziato ad analizzare\xa0le informazioni raccolte durante l\'incontro dell\'11 e quelle ottenute tramite il form online.\xa0
\n\nI molti spunti raccolti con la community ci hanno permesso di iniziare a immaginare possibili scenari futuri\xa0che cercano di migliorare l\'esperienza\xa0del "dioniso" che deve servirsi della rampetta mobile di chiamata.\xa0
\n\nAbbiamo cercato di raccontare possibili user-journeys in una mappa di flusso che trovate qu\xec sotto.
\n\nAl momento, abbiamo lasciato fuori dalla mappatura le considerazione relative a come Minerva pu\xf2 richiedere, ottenere e installare i vari dispositivi. Andremo ad approfondire l\'argomento in un secondo momento quando sar\xe0 presa una decisione sull\'esperienza utente che andremo ad implementare e testare.
\n\nTutti invitati a commentare le proposte che trovate nell\'immagine allegata!
\n\nPotete anche scaricare il file qu\xec
\n\n', u'post_id': 842, u'date': u'2017-06-06 12:39:31'}, {u'user_id': 3279, u'title': u'Sharing reflections', u'comment_id': 7329, u'content': u'There is always a\xa0series of encounters and discussions that help pave the path that\xa0led to idea creation. During these conversations, it;s the human "Why"- not the scientific "Why".It\'s in those personal interactions that give a voice to humanistic problems. \xa0@Noemi @Nadia
', u'post_id': 861, u'date': u'2017-06-06 11:59:47'}, {u'user_id': 3310, u'title': u'it happens in the hybrid space...', u'comment_id': 17069, u'content': u'@Noemi thank you for asking more about.
\n\nWhat i\'m understanding is that is not a matter where it happens, but that it may happen. Those are events useful to tune a heuristic model. People use the web, come to the meetings, post a comment... The matter is about having a representation and a plan of the event strong enough to let the input in from participants. I will follow your suggestions. Thank you
', u'post_id': 852, u'date': u'2017-06-05 20:27:10'}, {u'user_id': 3, u'title': u'How does the codesign with shop owners happen?', u'comment_id': 14239, u'content': u'@Federico_Monaco you leave us wanting more Does it happen in workshops with more people, in meetings one-on-one, on the internet as well..?
PS I suggest whenever you blog about WeMake work or OpenRampette you make sure to link to a context post on edgeryders or elsewhere so that when we share your notes on the Internet readers can plug in directly in the conversation - or just explain in 3 introductory sentences what is OpenRampette and what question is poses.
', u'post_id': 852, u'date': u'2017-06-05 20:13:40'}, {u'user_id': 3310, u'title': u"It's time for public engagement", u'comment_id': 10708, u'content': u'Yes, you are getting it right.
\n\nInnovation processes and progress policies should involve citizens as designers to build a much responsible and sustainable society.
', u'post_id': 852, u'date': u'2017-06-05 08:05:49'}, {u'user_id': 3681, u'title': u'Undisclosed content ', u'comment_id': 9672, u'content': u'Undisclosed content', u'post_id': 852, u'date': u'2017-05-30 22:48:47'}, {u'user_id': 3362, u'title': u'Did I understand?', u'comment_id': 6920, u'content': u'Hi @Michielstock , good to read you had the call with Noel.
\n\nLet me rephrase this to see if I understood correctly:\xa0your work with machine learning uses the output of Noel\'s computational work (matrices) as input, and when you have sufficient data, you can \'shortcut\' the work by using those matrices directly to generate new matrices. In essence, automating, optimising and speeding up the modelling that he does now. Am I\xa0in the ball park?
\n\nDid you make any plans for what\'s next?
\n\nPS tagging someone fails sometimes when there is no space\xa0behind the tag. Like this it works @BramDeJaegher .
', u'post_id': 6379, u'date': u'2017-06-05 19:16:00'}, {u'user_id': 3082, u'title': u'Amazing post...', u'comment_id': 29963, u'content': u'There is always light somewhere.. and light comes in through the places where scars used to be..
', u'post_id': 548, u'date': u'2017-05-04 10:07:49'}, {u'user_id': 3403, u'title': u'definitively', u'comment_id': 29079, u'content': u"I often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing\xa0 exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.
\n\nAlso, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.
", u'post_id': 548, u'date': u'2016-11-03 12:33:54'}, {u'user_id': 4, u'title': u'Wondering...', u'comment_id': 27820, u'content': u'... if @ybe has found evidence of "digital grieving" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...\xa0
\n\n', u'post_id': 548, u'date': u'2016-11-03 10:28:38'}, {u'user_id': 8, u'title': u'What could space for this kind of "meta" conversation look like?', u'comment_id': 26051, u'content': u'It\'s such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of "distance" such as this one helpful for handling the feelings. And for sensitising others/ building literacy around how to help/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...
', u'post_id': 548, u'date': u'2016-10-17 08:57:13'}, {u'user_id': 3397, u'title': u'Hi Patrick,', u'comment_id': 25204, u'content': u'\n\nI echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever "has not moved on", is "affecting others", is "bothersome" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.
', u'post_id': 548, u'date': u'2016-10-17 04:46:03'}, {u'user_id': 104, u'title': u'great post', u'comment_id': 24145, u'content': u'\n\nThanks for this. I suffered a loss many years ago and couldn\'t understand the reaction of the people around me. It was if they allowed me a month or two to "get over it" and then I was expected to move on. Some good friends couldn\'t bring themselves to mention the dead person\'s name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone\'s relief it seemed. I remember crying in front of my brother a few months later and he didn\'t know how to cope. But he hadn\'t been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.\xa0
', u'post_id': 548, u'date': u'2016-10-13 22:23:27'}, {u'user_id': 3397, u'title': u'Hi @Alberto,\n\nI responsed\xa0to some of these in my ', u'comment_id': 22330, u'content': u'Hi @Alberto,
\n\nI responsed\xa0to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation\xa0of a person with the\xa0actual\xa0person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are\xa0nostalgia\xa0rather than\xa0replication, which is probably why concept behind the BM episode was so arresting - it sought to\xa0replace\xa0the dead rather than\xa0remember\xa0him.\xa0
', u'post_id': 548, u'date': u'2017-06-05 10:22:49'}, {u'user_id': 4, u'title': u'I had no idea', u'comment_id': 20691, u'content': u'Wow, @wishcrys . This is a beautiful, well researched post.\xa0
\n\nI am definitely not young anymore, and I guess I am still moving within the paradigm of "mourn, then move on". Actually, my understanding is that you mourn exactly to\xa0make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.
\n\nThis is why the famous Black Mirror episode about digital afterlife was so disturbing. The protagonist was flailing about, unable to move on, as the AI occasionally manages to make a convincing simulation of her dead husband. Convincing, that is, to her: we, the spectators, are not fooled. We shake\xa0our heads as she holds on to the simulacrum. We see her doing almost all the cognitive work to build the illusion of an ongoing relationship.\xa0
\n\nThis is a well known bug in our cognition: we antropomorphize. In computer science, this was first exploited by the famous ELIZA program in 1966. psychological research around it established that\xa0
\n\n"[...]\xa0even if fully aware that they are talking to a simple computer program, people will nonetheless treat it as if it were a real, thinking being that cared about their problems." \u2013 source
\n\nI had a friend who was very active on social media \u2013 in fact one of its early\xa0users, and author of a 2003 book thereabout. When he passed, I unfollowed his accounts. The last thing I want is a digital ghost haunting my feeds.\xa0
', u'post_id': 548, u'date': u'2016-10-12 18:19:09'}, {u'user_id': 8, u'title': u'Also came across this story which miht interest you', u'comment_id': 15488, u'content': u'http://www.theverge.com/a/luka-artificial-intelligence-memorial-roman-mazurenko-bot
', u'post_id': 548, u'date': u'2016-10-12 13:49:49'}, {u'user_id': 3, u'title': u'A way of caring for those remaining..?', u'comment_id': 12425, u'content': u'I have one such example and it seems that the more distant relatives or friends\xa0posting are trying to support those closest "in rank", albeit from afar. It\'s almost as if trying to show that\xa0they care, maybe for the same reason @Patrick_Andrews mentioned - because they don\'t know how else.\xa0
\n\n"(Mutual) aftercare" is an interesting\xa0word I will remember, thank you for introducing it.
', u'post_id': 548, u'date': u'2016-10-28 17:47:52'}, {u'user_id': 3397, u'title': u'Hi Nadia,', u'comment_id': 11904, u'content': u'Hi @Nadia,
\n\nThanks for your thoughts. I\'m sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the\xa0digital\xa0platform of social media (they pay less attention to the\xa0public\xa0nature of some of these platforms).
\n\nMemorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the \'inner social circle\' for mutual aftercare.\xa0
', u'post_id': 548, u'date': u'2016-10-17 04:36:00'}, {u'user_id': 8, u'title': u'Cousin', u'comment_id': 8509, u'content': u'Hi Crystal.
\n\nI am sorry for your loss. This is a difficult topic to write about and not sure how to go about it. But I\'ll just go ahead and try. Reposting your questions here with an attempt at answering them below:
\n\nFour years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn\'t go to the funeral: it still feels surreal, like she might show up at any time, and the "active" facebook account isn\'t helping.
\n\nI am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else\'s death\xa0feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.
\n\nWhen I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch "We Live in Public"? I did many years ago and it has definitely shaped how I feel about social media.
\n\nUsing Social Media more conscienscously....mmm I don\'t know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based "fast" media. I ask myself what effect this has on the dynamics of grief, which are slow and\xa0somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature.
\n\nIn my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in\xa0Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other\xa0rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief\xa0strikes, the individual is embedded in a nurturing local community that can help them heal.
\n\nMy two cents..
\n\nI don\'t know if it relevant to your work
', u'post_id': 548, u'date': u'2016-10-12 10:19:00'}, {u'user_id': 3310, u'title': u'FYI', u'comment_id': 6793, u'content': u'\n\n', u'post_id': 851, u'date': u'2017-06-05 09:08:08'}, {u'user_id': 3, u'title': u'Really makes a difference!', u'comment_id': 22743, u'content': u'Wow, much more informative\xa0@shakaerjola and good luck with your new work at YMCA! Is there a youth\xa0project that changes the face of Albania right now? Perhaps something where broader communities are involved..? Connecting with a project of community care would be very interesting. It would be a first for edgeryders in that area
Hi Ola @shakaerjola and @bageloptimal , welcome!\xa0
\n\nI\'m Noemi, one of the veteran edgeryders community members here on the platform, and curious to see what keeps you busy in your daily lives: what you studied or what projects you are involved in.. It would be great if each of you:\xa0
\n\n1) adds\xa0a little background in your stories\xa0and
\n\n2) updates your user profile: to do this, go to\xa0https://edgeryders.eu/en/user and click on "Edit Profile" tab to add text.\xa0Here is an example of the kind of info\xa0useful for others to be able to connect with you.
', u'post_id': 854, u'date': u'2017-05-31 15:24:21'}, {u'user_id': 3673, u'title': u'Undisclosed content ', u'comment_id': 16245, u'content': u'Undisclosed content', u'post_id': 854, u'date': u'2017-05-30 23:50:21'}, {u'user_id': 3681, u'title': u'Undisclosed content ', u'comment_id': 9651, u'content': u'Undisclosed content', u'post_id': 854, u'date': u'2017-05-30 22:41:39'}, {u'user_id': 3682, u'title': u'Amazing ', u'comment_id': 26027, u'content': u'Dear, its utmost need of this said topic,\xa0
\n\nBest wishes .....
', u'post_id': 715, u'date': u'2017-05-30 23:13:06'}, {u'user_id': 3362, u'title': u'Update', u'comment_id': 24301, u'content': u"I thought I'd write a small update. In September 2016, we have launched a new nonprofit for education called Ekoli. Reasons for putting our educational activities in a new entity were better communication and keeping the biohacking legally seperate (translates into admin & cost advantages).
\n\nIn retrospect, it was also good to assemble a new team around a new common goal. This fresh wind pushed us to where we are now, having reached hundreds of underpriviledged children & school children and poised to grow a lot in the new school year after the summer.\xa0
\n\nDownsides so far have been extra overhead (two administrations) and spreading the core team's (those involved with both Ekoli and ReaGent) \xa0time too thinly. Generally it was a good decision though.
", u'post_id': 715, u'date': u'2017-05-30 14:31:26'}, {u'user_id': 1584, u'title': u'Great to see you made your way to ', u'comment_id': 20249, u'content': u'Great to see you made your way to Edgeryders @WinniePoncelet and thanks @Alex Levene for bringing me into this loop!
\n\nI am indeed working with Winnie and a few others on an P2P initiative to let people grow edible insects at home. I saw the project as a slow burner. It is hard to bring the P2P approach to the public and it\'s a constant experiment to find the right approach to get is going. For me and the others, the project is going down on the priority ladder of all our activities...
', u'post_id': 715, u'date': u'2016-08-10 09:37:47'}, {u'user_id': 3362, u'title': u'Super interesting!', u'comment_id': 18972, u'content': u'Super interesting Damiano. We wrote a proposal for the same thing in December: install a DIYbio lab in a high school. We had a nice consortium of partners, but sadly it did not go through. I\'d be very interested in reading the rest of the documents.
\n\nI did my thesis on correlations between phenotype characteristics and seed yield (+ genetic diversity) in red clover. I know first hand the horrors of measuring the size of 10.000 tiny flowers, tagging genetic barcodes and the weeks of zombie computer work this brings. Luckily, research institutions have students and interns to do this stuff . You make a very valid point: phenotypic research can benefit a lot from citizen science.
Hello @Noemi,
\n\nI updated the link. The proposal wasn\'t take in consideration and the Ministry started a plan focussed on Fablab-like labs (Laboratori Territoriali and Atelier Creativi).
\n\nEugenio now is focussed in Platforms http://platformdesigntoolkit.com/ , but I can contact him or other people from the Hackteria network.
\n\nFor individuals involved in policy making, I don\'t know.. but I will be at the ASEF summit https://goo.gl/z9WzMD and I have the chance to present proposals both for sharing economy and for education/c.science.
\n\nThere\'ll be lots of important policy makers (several Ministers of Finance from Asia and Europe, etc. With the right preparation, we could try to invite someone at Open Village through ASEF.
\n\nCount on me for this thematics; I will help if I can.
', u'post_id': 715, u'date': u'2017-05-31 13:38:09'}, {u'user_id': 3, u'title': u'Which connections in Italy?', u'comment_id': 18968, u'content': u'Hey @Damiano , the url to the folder you linked to\xa0says "Linked not found". Do you personally know someone in the Ministry who could be an interesting conversation partner at our event? Winnie is one of the lead curators and is looking at citizen science more broadly - of course people involved in policy making would make a big difference if they came. Or maybe we could ask E Battaglia.. what\'s your advice?
', u'post_id': 715, u'date': u'2017-05-30 21:48:20'}, {u'user_id': 3605, u'title': u'Biohacking in Italy', u'comment_id': 18966, u'content': u'Hello @WinniePoncelet, good job, I hope to come in Gent soon to visit the biohacker space.
\n\n@Noemi @alberto you might be interested in the work done by Eugenio Battaglia to bring low-cost biohacking-lab in every school, we tried to propose it to the Ministery of Education.\xa0
\n\nHere you find part of the documents\xa0https://drive.google.com/file/d/0B3a6iTS9jqfCY242M0g2VUp4QUU/view?usp=sharing (if you want I can share the rest)\xa0
\n\nIn general, I think biohacking have an enormous potential, for educational purpose, it\'s already very valid.
\n\nI think the movement should be ready to take action to make aware of what could happen in few decades/years with genome editing and aging, etc. , that could be some unprecedented achievement but the risks that they could bridge economic inequality to biological inequality.
\n\nI focussed on agriculture,\xa0I have created a project (never realized) that was called Openphenotyping, it was about democratic plant phenotyping ( http://www.thefreedictionary.com/Phenotyping ) and it aimed to give the power of biotechnology to small farmers\' cooperatives to maintain and exalt biodiversity, also, \xa0through genetic modification.
\n\nThe idea about Openphenotyping it was based on the fact that genome data became cheap to get, while phenotypic data represent one of the main barriers to research.\xa0
\n\nThe fact that Phenotyping is relatively simple could lead to a competitive advantage for bottom-up initiatives against big corporations, and more\xa0in general, could allow the involvement of a much wider group of people in research processes and their benefit.
\n\nI never had the chance to realize the initiative, but I will be very glad to know more if there are similar actions taking off or another project that tries to tackle some major problems related to "traditional" biotech.
', u'post_id': 715, u'date': u'2017-05-31 11:54:01'}, {u'user_id': 3362, u'title': u'Inspiring', u'comment_id': 18946, u'content': u'Thank\xa0you for sharing\xa0Noemi, that\'s also quite an interesting approach. Biotech is still in the early stage, but it should be possible. What I am especially curious about is how we can cooperate with different actors on the controversial issues, like GMO. We don\'t pick any side, because we don\'t think there should be polarized\xa0sides: we\xa0want to tell a nuanced story, which is the hardest task of all. But as soon as you involve big biotech, concerned citizens might drop out and self-censor. The same could happen vice versa. Perhaps it is ideal to steer clear of the subject for a while, there are so many other interesting things to talk about anyway.
\n\nI\'ve not met @Rozina, but I saw her around on some events in Brussels.\xa0I believe she was talking about schools for children with special needs, if I am not mistaken. But perhaps the same holds true for standard schools, we will try and find out
@WinniePoncelet, yes I\'ve played CLUEDO but it\'s never occured to me that it\'s a good edu resource. Whoa.
\n\nMy mom is a computer science teacher.\xa0She is organising tech contests and involves IT companies who are very much on the lookout for future hires. They not only sponsor by providing the prizes, but also\xa0come and become juries in the contests, and enjoy meeting bright young people. True, they are true moneybags, but thriving businesses are probably not a rarity.\xa0Also, the Education Ministry\xa0has passed a provision saying that\xa0a week every year in spring\xa0all schools\xa0have the opportunity to insert more creative and unconventional programming in their schedule: "Different School" is called\xa0- completely decentralized, so teachers themselves select and organise\xa0activities for their pupils - including taking them outside school.
\n\nHave you met @Rozina? She\xa0mentioned\xa0that the school has no time to think extracurricularly but if parents or other supporters can lead, than they are up for hosting more creative things.. \xa0
', u'post_id': 715, u'date': u'2016-08-17 08:26:15'}, {u'user_id': 4, u'title': u'Yes on both counts', u'comment_id': 18832, u'content': u'@WinniePoncelet I will make sure to let you know. In fact, I could even come just for a visit of ReaGent, it\'s really close to Brussels. And yes, I will most likely be at the workshop.
Thank you @Alberto for the kind words and\xa0valuable advice.
\n\nIf you\'re ever around again, let us know and we\'ll gladly show you around :). Will you be there in Brussels for the workshop in September?
', u'post_id': 715, u'date': u'2016-08-11 13:46:47'}, {u'user_id': 4, u'title': u'Not clients, partners', u'comment_id': 18286, u'content': u'In most of Europe schools have no money (I do not know the situation in Flanders). But they make great partners. In Italy, we have a legislation (and, by now, a tradition) of local businesses supporting extracurricular activities in schools. Good school principals build a network of local businesses they work with. So, it could work like this: you involve a school, then \u2013 together with the school principal \u2013 you target local businesses to support the activity.\xa0
\n\nAnyway, @WinniePoncelet ,\xa0congrats, that\'s a great project.\xa0I live in Brussels, and will keep you guys on the map with a view of looking you up. We visited Gent just a couple of weeks ago with @teirdes \u2013 we would have knocked on your door if we had known you existed!\xa0
', u'post_id': 715, u'date': u'2016-08-10 10:58:07'}, {u'user_id': 3362, u'title': u'Morning laugh', u'comment_id': 17283, u'content': u'Hi Noemi, thanks for that video. The instant sound of kombucha slime landing on that table blasting through my speakers made me laugh out loud during my morning coffee.
\n\nAn example of a workshop is a DNA Cluedo (or Clue?) game where children in group have to solve a murder using biochemical and forensic techniques. We haven\'t crossed any language borders yet, but hopefully we will in the future :).
\n\nWe\'re now going to start testing out in what way we can work together with schools. So far it seems like they have very limited means. We will try and make it work regardless, the way you mention might work. Thanks for the tips
Hi @WinniePoncelet and welcome to Edgeryders! I checked your website to see what projects students are experimenting with right now\xa0but unfortunately I don\'t speak\xa0Flemish Can you give us an example? New biodegradable materials are always interesting, I was watching\xa0this video\xa0the other day about\xa0fabric from kombucha, a bacteria I myself tried as\xa0tea (tastes great btw).
To your question, I dont know much about business models but\xa0I\'m wondering if you can finance at least part of the work\xa0through collaborations with schools where you provide a curricula and a new kind of classroom, and the school covers\xa0tutors salaries and some materials. Maybe you\'re doing this already?\xa0
', u'post_id': 715, u'date': u'2016-08-10 06:26:55'}, {u'user_id': 3362, u'title': u'Thank you Alex. It is funny how you ', u'comment_id': 11069, u'content': u"Thank you Alex. It is funny how you meet the same people in different places. I'm working together with Merel on a P2P initiative to let people grow edible insects at home, as a form of urban farming and food autonomy. How did you come into contact with him?
", u'post_id': 715, u'date': u'2016-08-10 07:05:02'}, {u'user_id': 2569, u'title': u'A great idea', u'comment_id': 7618, u'content': u'Thank you Winnie for sharing this with us.
\n\nThis sounds like a brilliant project, and a great use of resources that would otherwise be wasted.
\n\nI\'m not sure that i know the answer to your questions?
\n\nBut perhaps you would like to make contact with @Merel Claes who is also on Edgeryders and works in the Netherlands in\xa0some of the areas you are investigating.
', u'post_id': 715, u'date': u'2016-08-09 22:44:50'}, {u'user_id': 3, u'title': u'Preaching to the choir', u'comment_id': 33438, u'content': u'That\'s a say which points out that the people already active will continue to do this anyway: we are not environmentalists, or have a job to take care of the earth, we do it because we like it, but there\'s only a few trees we can care for personally. I think projects like yours @iffat_e_faria are more important because you systematically convince people who dont normally do this, and have a bigger impact. So more power to you, do keep Edgeryders posted if you are looking for partners or would like to exhibit or demonstrate an action during the OpenVillage festival we are organising in Brussels.
\n\nAnother idea: if you are available, you can organise an OpenVillage in your city at the same time as the event in Brussels - as a partner. So you have international promo throuhg this network, yu can use the name and the communications, and we\'ll make sure to coordinate to share the learnings from Europe all the way to Bangladesh and the other way around. let me know..
', u'post_id': 848, u'date': u'2017-06-01 14:38:57'}, {u'user_id': 3664, u'title': u'Dr. @saeed_qaisrani, First of all, thank you so ', u'comment_id': 26970, u'content': u'Dr. @saeed_qaisrani, First of all, thank you so much foe finding time to read my story and sharing your thoughts. I do not really know why more people are not being concerned about trees. I just hope and pray it is not too late when they finally realises. Please keep in touch and share the plan with others. TC.
', u'post_id': 848, u'date': u'2017-06-01 13:28:00'}, {u'user_id': 3682, u'title': u'Plants for Future ', u'comment_id': 26066, u'content': u'Dear @iffat_e_faria, its very impressive and motivational efforts. All around the world, people are gearing up for earth day. Started in 1970, this designated day of April 22 has become an annual reminder of our responsibility to be good stewards of the Earth. You did excellent and contributed into a healthier Earth in multiple ways with plant a garden, which committed to reduce, reuse and recycle.
\n\nGood and keep it up...... All the best for your future endeavors
\n\nDr. Saeed Ahmad Qaisrani
', u'post_id': 848, u'date': u'2017-05-30 21:48:11'}, {u'user_id': 3664, u'title': u'Dear @WinniePoncelet, I feel really glad to know ', u'comment_id': 25251, u'content': u'Dear @WinniePoncelet, I feel really glad to know that there is someone at the other part of the world , thinking the exact same process to make a positive change in the environment. I really felt good about the whole story from the beginning to collect them from a play and to saving them and nurturing. The efforts, time and energy you have given behind this , is truly amazing. I hope there will be more to this story, 4 other loving people like you will take those beautiful trees away and give them the proper care that they deserves. I hope to see more tiny apple fruits on the branches , and let others knoiw tbat they have life too, the strong will of surviving and more.
\n\nThank you for comnmenting here, means a lot.
', u'post_id': 848, u'date': u'2017-06-01 13:25:12'}, {u'user_id': 3362, u'title': u'A tree story', u'comment_id': 24340, u'content': u'Hi @iffat_e_faria. More green, more forests are beneficial to our health in so many ways. Taking joy of caring of them as @Noemi points out, taking a walk in the forest, cleaner air, better soils, more stable climates, more biodiversity, ... The list goes on.
\n\nIn Brussels there is a project I met that is offering a tree planting service to stores. The service entails that Creo2 will be the intermediary to invest in a non-profit for eg. every euro spent by a customer. They started with trees a few years ago and now it seems they have gone broader.
\n\nFive seems to be the magic number, coincidentally I planted five trees myself about 1,5 years ago. Here\'s the story. The five apple trees were a leftover decor piece from a theatre play, so we saved them. Here\'s loading them in a cargo bike:
\n\n\n\nThe ride was pretty funny, people didn\'t know what was going on as we were driving a mini-forest through streets and parks. We also found out that the electrical wiring for the trams is not conducive to mobile trees.
\n\nWe planted them at our lab:
\n\n\n\nThis month, we have to move our lab since the old building will be erased, probably together with the trees. So we have to save them again. Last month we already saved a small one by taking it to the Edgeryders space in Brussels. @Noemi and I took it by train and after surviving the shock, it\'s now settled in! There\'s even an apple growing:
\n\n\n\nFour to go! Any potential hosts around?
@Damiano , Hello.
\n\nYes I understand, Still I am hopefull because I am getting positive feedbacks.
\n\nReally? Wonderful! I will check and keep tracks of Kemo from now on and will get in touch with Ecosia.org too. Thanks for suggesting! Have a good day.
', u'post_id': 848, u'date': u'2017-06-01 13:17:19'}, {u'user_id': 3605, u'title': u'Green Up', u'comment_id': 21069, u'content': u'Hello @iffat_e_faria, it\'s hard to create a viral campaign that requires even small effort to engage, unfortunately, people are really lazy.
\n\nYou might want to connect with Green-Up-Gambia Green-Up Gambia - Home | Facebook founded by my friend Kemo Fatty.
\n\nAlso, it might be a good idea trying to get in touch with Ecosia.org !
', u'post_id': 848, u'date': u'2017-05-30 15:34:20'}, {u'user_id': 3664, u'title': u'Hello dear @Noemi mam. Thank you foe your ', u'comment_id': 18773, u'content': u'Hello dear @Noemi mam. Thank you foe your words, Yes we met once and my project is running well now as it is summer in my country, everyone is tired of this increasing heat , poeople are showing interest in planting trees for their own sake. We are offering a new option to the landlords , if they let us use their rooftops, they\'ll get paid in return. Few people joined already and more are joining. I am hopeful because I think deep inside everyone loves their planet and the idea of going green has a thousands og positive side. I will be posting few pictures of our improvement soon.
', u'post_id': 848, u'date': u'2017-06-01 13:14:46'}, {u'user_id': 3, u'title': u'Nice: the City and private companies collaborating', u'comment_id': 18447, u'content': u'@iffat_e_faria @mashrekur_rahman hello again and what were the chances of you two meeting here online?! Are you already seeing some positive results with your project Iffat?
\n\nI especially like the idea of talking to private companies - where I come from in Romania, I have many friends working in corporate environments who would like to volunteer more, or get their colleagues to volunteer more - and they dont have a fun way to do it, together (better than on their own..). Their thinking is: why dont we talk to management to convince them to give us 2 hours once a month to go out on a set cause. A good person to "make the case" and convince management in the company is the employee representative - who understands volunteering but also the interests of the company and knows how to frame it.
\n\nAn actual example, a few years ago our city hall gave all the green spaces in the city for "rental" to firms willing to maintain them - so the firms took their employees out for planting weekends. After that they get their name on the green space as the "Carers" of the space.
\n\n', u'post_id': 848, u'date': u'2017-05-30 13:53:33'}, {u'user_id': 3664, u'title': u"Thank u so much ! @mashrekur_rahman why don't ", u'comment_id': 17589, u'content': u'Thank u so much ! @mashrekur_rahman why don\'t you take the challenge and join us too?
Hello Iffat,
\n\nBeing a scientist and environmentalist from Bangladesh myself, I can appreciate the simplicity of your project. There are of course some challenges associated with it. However, it's a great initiative. Well done!
", u'post_id': 848, u'date': u'2017-05-25 13:43:43'}, {u'user_id': 3664, u'title': u'Thank u so much @Gehan. I am trying ', u'comment_id': 11325, u'content': u'Thank u so much @Gehan. I am trying my level best while keeping it simple because people tend to avoid engaging themselves in complex tasks. 5 trees won\'t take much space but will ensue a better environment around for sure. I hope more people are going to join in near future. I am going to keep updating the results. Take care.
', u'post_id': 848, u'date': u'2017-05-24 10:38:57'}, {u'user_id': 3613, u'title': u"Hello\xa0@IFFAT-E-FARIA, thank you for sharing this project. It's ", u'comment_id': 8154, u'content': u'Hello\xa0@IFFAT-E-FARIA, thank you for sharing this project. It\'s challenging to take action in the face of such overwhelming issues. There\'s real\xa0strength in the simplicity of your project - planting 5 trees. This creates a solid foundation from which\xa0you\'re exploring diverse ways to motivate people to participate by seeking out where incentives might lie. Motivating people to change behaviours that are contributing to global crises or in support of conservation is no easy task. My own sense is that its not lack of information or awareness. I think people feel despair, hopelessness or perhaps denial. They would rather distract themselves with other things. I don\'t think there are any easy answers. I know there was a project here in the UK who came to the conclusion that issues of global warming were being responded to with more and more science and evidence when the root cause was cultural - and especially the myth of progress and civilisation that we perpetuate.\xa0
\n\nI wish you all the best in your efforts.
', u'post_id': 848, u'date': u'2017-05-23 22:22:07'}, {u'user_id': 3362, u'title': u'Consumables', u'comment_id': 26681, u'content': u'Thanks to @ritavht for making an overview of what we need to get started with the plasmids once they arrive. The list can be found in the Drive here.
\n\nIt seems we are at about \u20ac400 in total, if we buy everything. I know we do have some things in ReaGent to save some costs.\xa0Does anyone have spare things lying around?
\n\nWe can\xa0discuss this & more at the meeting next week June 7th (8 pm @ ReaGent).
', u'post_id': 6325, u'date': u'2017-06-01 10:09:22'}, {u'user_id': 4, u'title': u'Thanks!', u'comment_id': 25188, u'content': u'Appreciate that you take the time to explain, @ritavht .
', u'post_id': 6325, u'date': u'2017-05-15 18:28:44'}, {u'user_id': 3580, u'title': u'plasmids vs culture', u'comment_id': 24451, u'content': u"The plasmids need to be put in bacteria. Therefor, we have to make bacteria 'competent' (= able to take up 'naked' DNA) or we need to buy 'competent' bacteria. Buying is more expensive but more efficient.
", u'post_id': 6325, u'date': u'2017-05-15 17:59:04'}, {u'user_id': 4, u'title': u'Stupid question', u'comment_id': 21226, u'content': u'What are the practical differences between dealing with plasmids and dealing with the culture?
', u'post_id': 6325, u'date': u'2017-05-15 17:41:34'}, {u'user_id': 3580, u'title': u'lab thread', u'comment_id': 16297, u'content': u"I'm available for lab work starting June 26th.
", u'post_id': 6325, u'date': u'2017-05-15 17:26:17'}, {u'user_id': 3587, u'title': u'RE: lab thread', u'comment_id': 9779, u'content': u'Unfortunately work is consuming all my energy right now (and next week I\'m on holiday for half a week), so I won\'t be able to coordinate or help with the lab work. But great news that the samples are on their way \xa0
Well, there\'s a bunch of videos like this one on the Internet, I\'m sure you\'ve seen them\xa0
Hi @Pat, welcome from me too, I\'m one of edgeryders long time members, based in Romania.\xa0I think we have common friends in Bernard, Thom and the crew.. I also visited Connemara in spring last year, beautiful place, and with more nature than humans around.
\n\nDo you think the mobile version of the tiny home would be suited for a larger event (60+ people)? Nadia may have told you, we are looking into modular structures but also environmentally friendly, so that after the event when time comes to wrap up there is no waste.. Like Alberto, I am curious about the climate suited and other favourable or unfavourable conditions.\xa0
', u'post_id': 801, u'date': u'2017-01-09 19:21:54'}, {u'user_id': 3, u'title': u'Community development -more rural than urban?', u'comment_id': 12304, u'content': u'Hi @Pat no worries. The beauty of this kind of online interaction is that it\'s asynchronous, no one has to be on call all the time. I wonder thouhg, if this popup / mobile structures are such a hit and I assume so much more affordable, what does it take for communities to adopt them systematically?
\n\nHaving met people working in sustainable housing and also at the policy level, there\'s two steps I found they follow: 1) moving away from cities to be able to run with greener technologies that dont otherwise get approved by authorities\xa0(by green tech\xa0I mean, for instance\xa0insulating with clay mixes, recycled pallettes, wool or cellulose..). 2) building more houses on larger pieces of land and adding an educational center near it to support community development.
', u'post_id': 801, u'date': u'2017-04-22 08:19:21'}, {u'user_id': 3514, u'title': u'Undisclosed content ', u'comment_id': 10975, u'content': u'Undisclosed content', u'post_id': 801, u'date': u'2017-04-20 16:14:17'}, {u'user_id': 4, u'title': u'Building, teaching, healing', u'comment_id': 9161, u'content': u'Hello @Pat , welcome! I have heard much about you from @Nadia , but\xa0I only discovered your post today.\xa0
\n\nThe "teaching" in the title of this comment is not a pun with the Irish "teach\xedn", by the way. I was hoping to learn more about building the tiny houses. How do you do it? What is needed to build them? How do they connect with your gardening project? Could you not have made a garden next to a "normal" house? If the West of Ireland is anything like rural Italy, there will be plenty of unoccupied property lying around. Also: what kind of climate is compatible with a tiny house?\xa0
\n\nThere is another sense that no pun was intended. I find that teaching (and, reciprocally, learning) is good for the soul, the collective "soul" of the community as well as the individual one. In the hacker community there is a strong orientation to knowledge sharing. It is useful, obviously, but it seems that many people do it because it\'s the right thing to do and because it feels good when done right.
What's not to like? Engage with your hero\xa0and\xa0get a ticket for yourself!
", u'post_id': 6364, u'date': u'2017-05-31 21:20:15'}, {u'user_id': 3074, u'title': u'Thank you for sharing ', u'comment_id': 11910, u'content': u'Hello @Noemi, thank you for sharing this content ! I will for sure promote the event among our community at UBx
These can be used by anyone who wants to present OpenVillage to someone in their network - and invite them to come. Mix and remix is welcome!
\n\ncc @Matteo | @zoescope | @melancon | @LuceChiodelliUB | @Gehan | @WinniePoncelet
\n\n1) Call for Session Proposals: visualisation.\xa0You can change the text in the visualization with your own, then save it as .jpeg or .pdf. Don\'t forget to add a short introduction when sending it!\xa0https://docs.google.com/document/d/1iRoJpLGLhTumNExvEHZg2j9pP0Dm5kiu0kyR924fOI/edit\xa0
\n\n2) OpenCare Co-Housing Story + Invite.\xa0https://docs.google.com/document/d/1R8s9rCt7kFlrCcVwL54XJMzIsGMl5U3nQKNYOTQAEA/edit
\n\n3) OpenCare Collective Exploration + Invite.\xa0https://docs.google.com/document/d/1zVUI685WglCfHu5TpUAGT4rYPL6g6TyQNItykk_HkQ/edit#
', u'post_id': 6364, u'date': u'2017-05-31 15:47:00'}, {u'user_id': 3, u'title': u'Saw the movie.', u'comment_id': 9905, u'content': u'I remember the movie and how influential it was when it appeared some years ago, still is. Actually we were shown it during civic education class at school
Are you involved in a similar initiative in your town in Albania? Which town do you come from by the\xa0way?
\n\nAn example of community project I recently took part in - along similar reasoning, is a community food waste dinner:\xa0takes a resource many people have: food leftovers - and use it to cook new dinners for others who could learn and do the same. Not poor people, but people who can then go home and reuse their waste in some positive way instead of throwing it to the garbage. Pay it forward, indeed.
', u'post_id': 856, u'date': u'2017-05-31 15:19:55'}, {u'user_id': 3682, u'title': u'Food safety and Security ', u'comment_id': 16179, u'content': u'Dear\xa0Jenny Gkiougki, Appreciating your kind efforts which reflects the defination of food security too i.e.\xa0The final report of the 1996 World\xa0Food\xa0Summit states thatfood security\xa0"exists when all people, at all times, have physical and economic access to sufficient, safe and nutritious\xa0food\xa0to meet their dietary needs and\xa0foodpreferences for an active and healthy life".
', u'post_id': 559, u'date': u'2017-05-30 22:12:47'}, {u'user_id': 5, u'title': u'Political coffee \u2026', u'comment_id': 13267, u'content': u'Thank you for making the connection @Noemi ! I so far framed this project in economic terms ("economic empowerment" etc.) but now that you say it, and after reading about @Jenny_Gkiougki \'s attitude above: yes it\'s obviously also political. Coffee is actually a quite extreme product: depending on what coffee you buy, you might vote for extreme labour exploitation (as in: 0.81% of sales prices going to the farm workers, as I calculate in this post on our project blog). Or you might vote for viable small businesses and giving them an opportunity to invest and expand (while also sending their kids to school etc.).
', u'post_id': 559, u'date': u'2017-01-05 15:35:39'}, {u'user_id': 3, u'title': u'News about the Nepalese coffee trade', u'comment_id': 13106, u'content': u'@Jenny_Gkiougki, happy new year! I think you\'ll love this example of an edgeryders supported small business just starting. The political meaning was clear for me when I read @Matthias being explicit on "globalization done right". Have a look?
', u'post_id': 559, u'date': u'2017-01-05 14:43:26'}, {u'user_id': 3417, u'title': u'I think perhaps there are other people more ', u'comment_id': 12835, u'content': u"I think perhaps there are other people more qualified by me to answer this: those involved in places where they have already set up such mechanisms like the people in the city of Corke and many others outside the EU borders. But if I were to give my personal opinion, as I said in the article I believe htat every action has a political meaning -picking up my fork, paying for whatever I decide to buy is done to fill my stomach, but without realising it much it is also a highly political action. Because with every bite and every buy I choose and I shape the world I want to live in.
\n\nThe point is that 'we the people' finally decide to take action, to become involved and to gain for the first time ever our own sovereignty -at least when it comes to what food we consume.
\n\nNothing is set. The future is what we make it. So it is up to us 'the people' to decide whether we want to continue living a life of subordinates, never resuimng our own responsibilities (which is actually much easier as there is always someone else to blame for our problems) or to finally ascend and take (our) matters into our own hands. Food policy councils are only as good, representative and successful as the people that comprise them...
", u'post_id': 559, u'date': u'2016-12-16 12:35:21'}, {u'user_id': 3, u'title': u"A down-to-earth result that's encouraging?", u'comment_id': 12382, u'content': u'You being at this level of international networking, interfacing and broad level education, @Jenny_Gkiougki, is there something that you see very concrete happening from your work that is echoed in this bigger picture? For example, what makes you think this\xa0Food Policy Councils idea (great one by the way) can work practically and not just get lost in the political talk about agroecology?
', u'post_id': 559, u'date': u'2016-12-16 12:06:15'}, {u'user_id': 3417, u'title': u'Hi there @Alberto! Thanks for reading -and watching ', u'comment_id': 11122, u'content': u'Hi there @Alberto! Thanks for reading -and watching
I\u2019m glad the idea (and the movement) of Food Sovereignty is spreading! And I will grant you that becoming self sustainable and autonomous is no easy feet. On the other hand, everything is as simple or as hard as we make it out to be. In nature everything is connected and everything functions through viable, long-term, symbiotic relationships. In this new model of a new society based on solidarity, collaboration, and fairness we are trying to create and advocate, I really do not think that anything can be achieved without partnerships. Nothing in nature works alone, why should we? Hence concepts like CSA are strong representatives of this new type of communities we need to evolve into. It also stands to reason that no-one can know everything and have experience (let alone expertise) in every field; by combining forces with someone that knows how to farm we stand to gain lots more than if go at it on our own. So I would say find local farmers to source your food from and co-produce together.
\n\nFood Sovereignty and Agroecology are political matters at heart -hence the (obvious) connection with governments and policy makers -as you correctly pointed out. What \u2018we the people\u2019 fail to recognize is that \u2018that\u2019 (governors and policy-makers) should be us! We need to play a more active role where our livelihoods and our present and future are concerned! So we need to find ways (and where there isn\u2019t one, create it) to push for changes in policy, in the way our affairs are run (and whom by). This is why pushing for the creation of Food Policy Councils is an idea I stand by, and this is why one of the main pillars of the FoodSov movement is related to this specific sector -ie political lobbying and advocacy. After all, the word \'eco\' in greek means house, the place where one lives, and we can\'t be proper (agro)ecologists without giving enough attention into how this house is run!
\n\nBut FoodSov and Agroecology are also about being practical and hands-on, hence the phrase about growing food and not writing manifestos. 70% of the world\'s food is produced -contrary to mass belief, by small farmers around the world. We are an active movement, we put food on our table every day, and that\'s no small thing. We just need to realise the importance and value of that, and unite with our natural allies -e.g. the producers and bringers of our food and health (for as a wise farmer once said \'we are not in the business of producing mere food! I like to say that what I do for a living is cultivate people\'s health\').
', u'post_id': 559, u'date': u'2016-12-16 06:48:00'}, {u'user_id': 4, u'title': u'Where to start?', u'comment_id': 7761, u'content': u'Hello, @Jenny_Gkiougki , welcome to Edgeryders!\xa0
\n\nFood sovereignty sounds like a great concept. Many people in Edgeryders are sympathetic to anything that breaks dependencies. A few are deeply involved \u2013 @Darren , for example, has been a permaculturist for a long time, and @Matthias is spearheading a (small, for now) effort to bring back online coffee production in a village in Nepal through a "fair direct" trade scheme.\xa0
\n\nIn your speech, you say that food sovereignty is about growing food rather than writing manifestos. But how does one really go about it? Growing basil plants on your balcony, fair enough. But what would be the\xa0second\xa0step? Some of the other activities you mention\xa0(Urban Food Policy Pact, European Network for Cities for Agroecology) are, after all, (local)\xa0government \xa0activities.
\n\nIn Edgeryders, we are considering getting our own space, and we would like to grow part of our own food. But that does not seem easy at all. Any tips?\xa0
', u'post_id': 559, u'date': u'2016-12-15 23:02:35'}, {u'user_id': 3682, u'title': u'Preventive Measures ', u'comment_id': 27823, u'content': u'Dear\xa0Michel, nice to see your article, its very interesting, here some preventive measures are given below for safe exit and i am sure you will definitely agree with that ....
\n\nDuring a Cyclone:
\n\nIf a cyclone is approaching and an official evacuation order has not been issued, you may decide to shelter in your home until the cyclone has passed through.\xa0
\n\nIf you decide to shelter at home:
\n\na heavy mattress
\nSome people venture outdoors during the eye of the cyclone, mistakenly believing that the cyclone has passed. Stay inside until you have received official advice that it is safe to go outside.
\nIf you must evacuate:
\n\nIf an official evacuation order is issued then you and your family must leave your home immediately and seek shelter with friends or family who are further inland or on higher ground.
\n\nAfter a Cyclone:
\n\nThe time immediately after a cyclone is often just as dangerous as the initial event itself.\xa0
\n\nMany injuries and deaths have occurred as a result of people failing to take proper precautions while exploring collapsed buildings and sightseeing through devastated streets.\xa0
\n\nOnce you have been advised that the cyclone has passed you must adhere to the following:
\n\nSince last week, Madagascar has been classified nation in disaster. The method of @Nick_Tavitashvili was helpful thanks for your advice @Alberto. Almost the majority of The North of Madagascar is in deep water. Some NGO who can acced with their cars in some places to bring some help, \xa0but there are many unaccessible places still need help. This link below shows how it\'s going on in one of the place where \xa0the cyclone Enawo went.\xa0
\n\n\n', u'post_id': 800, u'date': u'2017-03-17 16:45:29'}, {u'user_id': 3500, u'title': u'Thanks @Natalia', u'comment_id': 20497, u'content': u'Thank you @Natalia_Skoczylas and @Alberto
\n\nBeing a country often ravaged by tropical depressions and powerful cyclones I can relate with the debacles faced by @Michel. There have been a plethora of effective adatptation/mitigation measures applied in Bangladesh over the years. And gradually, we have grown quite adept at reducing vulnerabilites. Systematic risk assessment, identification of potential hazards and the placement of a tailored warning system have proven very effacious in reducing damages. However, cyclones are becoming more frequent with variable intensity - an observation supported by reliable scientific\xa0data. Although training, teaching and advising can be effective in raising awareness on survival techniques, a regionwide integrated and inclusive effort is required to truly generate meaningful impact. Please let me know how my expertise can be of further use in this case. Thanks.\xa0
', u'post_id': 800, u'date': u'2016-12-16 17:36:10'}, {u'user_id': 4, u'title': u'Great idea!', u'comment_id': 17319, u'content': u'Yes, @Mashrekur_Rahman is a great fit for @Michel and his problem. Bangladeshis know a thing or two about climate change mitigation measures!\xa0
', u'post_id': 800, u'date': u'2016-12-16 10:00:45'}, {u'user_id': 137, u'title': u'I would love @Mashrekur_Rahman to take a look ', u'comment_id': 14873, u'content': u'I would love @Mashrekur_Rahman to take a look at this. he is a scientist and acrivist dealing with climate change\xa0effects in Bangladesh, one of the hardest hit areas.
\n\nI do not have a ready tip, but i am aure it is timr for us to prepare a climate survival kit for many countries in the global south. do you think it would make sense to spend some months next year building a dedicated section on the platform to address this issue? maybe we could travel somewhere to research, connect with locals and create a database like this collectively?\xa0
\n\n@Matthias, @Alberto let me know what you think. i am back to europe next week and back to work as well. \xa0by work i mean edgeryders
Wow, @Michel , this is really sad. Climate change looks really different from Madagascar, with 14 cyclones a year...\xa0
\n\nI would not know, really, but I imagine that communities can help. Our friend\xa0@Nick_Davitashvili and the\xa0rest of the wonderful Guerrilla Gardeners in Tbilisi, Georgia, did many things to improve their city, and eventually led a massive effort to clean up after a flood had hit Tbilisi hard in 2015. Mention of the flood is at 19.00, but I recommend you watch the whole thing to get an idea of how they operate.\xa0
\n\n\n\nNick, are you reading us? Do you have any advice for Michel?
\n\nalso @Matthias and @Natalia_Skoczylas have experience of grassroots efforts to rebuild after the 2005 earthquake in Nepal. Matt, Natalia, any tip from you?
', u'post_id': 800, u'date': u'2016-12-15 22:30:00'}, {u'user_id': 3362, u'title': u'Impact tool', u'comment_id': 24327, u'content': u'Hi @Shajara ! I really like this idea, as it addresses a pain point many projects have, especially smaller NGO\'s. I\'m involved as a founding team member in a young NGO and we are now discovering the value of data & measurements, as well as the costs that come with it.
\n\nSupporting organisations know this and a consortium of NGO\'s in Belgium has recently launched Impact Wizard. It is spposed to help assess your impact, to then communicate it better to the public, funders, team members etc. There\'s a free trial week and then you need to get a yearly subscription of \u20ac90, which seems like a fair price to me. I haven\'t had the time to check it out in detail, so I\'m not sure how powerful it is in terms of data analysis.
\n\nLooking at it from your expertise, how does the\xa0idea relate to the Impact Wizard tool? @Shajara | @Alberto
', u'post_id': 6262, u'date': u'2017-05-30 15:27:49'}, {u'user_id': 3374, u'title': u'Interest!', u'comment_id': 23141, u'content': u'@powermakesussick, this is actually really interesting to me! I know you work on state level scales, but I was wondering what is the smallest population you\'ve worked with? The reason being, in my university\'s mental health office we have been wanting to collect more comprehensive data to use for planning interventions throughout the term, however, we have been hesitant to do so because we don\'t want to in any way encroach on the confidentiality of students. Knowing how to effective anonymize this data while still being able to work with it, could be deeply beneficial!\xa0
', u'post_id': 6262, u'date': u'2017-05-02 14:13:14'}, {u'user_id': 3374, u'title': u'Excited to work together', u'comment_id': 22628, u'content': u'Hey @Alberto, really good points I hadn\'t considered around the practical limitations of sample size. I would love to work with you on flushing this out! Please, see my other comment that I tagged you in for a possible outline.
', u'post_id': 6262, u'date': u'2017-05-02 14:26:00'}, {u'user_id': 4, u'title': u"I'll help too", u'comment_id': 22126, u'content': u'I\'m kind of a low-grade data scientist myself, and am struggling with the same issue. In Edgeryders, we do mostly small projects \u2013 not realistic to set aside huge resources for impact eval. But, if you are handling data, you are going to need resources. Reason: statistics. The simplest project eval tool is a test on the hypothesis that\xa0
\n\nvariable you are trying to affect with the project = variable you are trying to affect without the project
\n\nIf the test rejects the hypothesis, you have impact.
\n\nApart from the obvious problems of finding the counterfactual etc, this has a problem: you need enough\xa0datapoints to support your rejection. "Enough" gets complicated quickly:\xa0it depends on the size of the difference between the value of the variable with/without the project, on assumptions on the distributions of the error term in each realisation of the experiment etc.\xa0But basically: the more datapoints you have, the more accurate your test. You want to\xa0be able to say, for example, that the difference in the variable between with-project and without-project is significant at the 95% confidence level. But datapoints cost. It comes down to this: project eval with statistics can usually not be done for small projects.
\n\nDoes anybody have experience with qualitative eval methods, more tolerant of small sample sizes? Ethnography maybe?\xa0
\n\nWhat I\'m trying to say is that I volunteer to help @Shajara set up a session on this at OpenVillage.
', u'post_id': 6262, u'date': u'2017-05-01 08:56:00'}, {u'user_id': 3589, u'title': u'anonyminity', u'comment_id': 20783, u'content': u'@shajara, we are also very interested in this and would be excited to work together. However, we have a particular focus on how to preserve the anonyminity of participants in a given system\'s records to provide a layer of defense from state violence.\xa0We are designing a workshop now that explores the scalability of some of the techniques we saw from the solidarity clinics in Greece, such as identifying certain characteristics about the care seeker that the participants are aware of, etc. We\'d be happy to talk more about this is there is interest!
\n\nPMS
', u'post_id': 6262, u'date': u'2017-04-30 14:45:31'}, {u'user_id': 3374, u'title': u'Wow, fantastic insight!', u'comment_id': 19478, u'content': u'@Alberto Wow! You got the structure I was trying to outline, and you took it much further! I\'m especially interested in your third bullet point, as it addresses some of the nuances I am trying to understand myself. What would an example of "obviously useful" data look like, so I can better contextualize it?
\n\n\xa0Also, your friend\'s post brings in a great point about "thick data," which you touched on earlier with your requests for people with experience in qualitative analysis. We can use these sprints to not just look at the hard numbers but also us the unique advantage that participants have deep knowledge of their own projects to show what analysis can look like when you combine hard data with firsthand, stake holder\'s perspective.
\n\nLooking forward to hearing your thoughts!
', u'post_id': 6262, u'date': u'2017-05-07 00:39:50'}, {u'user_id': 4, u'title': u"That's a great idea!", u'comment_id': 19453, u'content': u'Well done, @Shajara ! This is actually actionable. You seem to have a knack for this stuff.\xa0Let me try to reformulate it, to make sure I understand.\xa0
\n\nCorrect?
', u'post_id': 6262, u'date': u'2017-05-02 16:35:36'}, {u'user_id': 3374, u'title': u'On the same page!', u'comment_id': 19347, u'content': u'Hey @Alberto,\xa0
\n\nI agree that I\'m not sure how to do it in such a clear cut way. Perhaps, the best way such a session could happen if instead of trying to provide a top-down comprehensive answer to all data problems, it could be more bottom up session focused on getting people to engage with the thoughts underlying different analytical methods.\xa0
\n\nWhere we\xa0would use some of the OpenCare projects that have already been introduced and have participants break into small groups, each with a different example and someone with a strong data background. Then have them discuss what kind of data has been collected, what different types of analysis could show, as well as the assumptions of each approach.\xa0
\n\nFollowed by a short presentation session where each group describes there conclusions of how they would have run their analysis. Where other groups have a chance to ask questions about what it actually means to run such an analysis (eg. using a linear model when perhaps one does not exist). And then conclude with summarizing takeaways and themes seen across groups, and creating a dedicated forum topic on Edgeryders where people reach out to the community with questions they have around data analytics.\xa0
\n\nWhat are your thoughts on this? This is just a quick outline of my initial thoughts and is completely amendable. Also, apologies if I take long to respond I have limited internet access for two weeks.
', u'post_id': 6262, u'date': u'2017-05-02 14:04:27'}, {u'user_id': 4, u'title': u'Very relevant!', u'comment_id': 14682, u'content': u'This is super-relevant, I am very interested in it.\xa0
\n\nI have to admit I have no idea how you might do this in a rough-and-ready way. Hope to learn more from the session.\xa0
', u'post_id': 6262, u'date': u'2017-04-22 08:58:21'}, {u'user_id': 3374, u'title': u'Context', u'comment_id': 11473, u'content': u'Hello @Noemi, I\'m doing well and am still at Minerva. I actually just finished with my semester in Buenos Aires! This line of thought has come from both assisting on an impact evaluation of a program the Federal Youth Ministry of Argentina is starting and a course I just took on program evaluation methodologies. These experiences showed me that a lot of the times people are collecting data that fails to measure what the types of changes they want to show or don\'t know how to best analysis it after they have it.\xa0
\n\nMy post was\xa0less of a direct question of how to use a specific data set and more of a starting point for creating space for people\xa0to start sharing advice and create best practices around data collection and analysis. I think this could be especially relevant to small interventions, that maybe lack a dedicated data analyst.
\n\nAlso, how are you and what have you been up to these last few months?
\n\n.\xa0
', u'post_id': 6262, u'date': u'2017-04-29 20:20:57'}, {u'user_id': 3, u'title': u'More context?', u'comment_id': 7538, u'content': u'Hi @Shajara, long time! Case in question, are you trying to process data you have from Minerva\'s educational online platform? Other than storage (maybe @Matthias can help with references to useful platforms), what would you like to do with it, what questions do you have that you hope that specific data could answer?
\n\nAre you still in Berlin, how\'s it going?
', u'post_id': 6262, u'date': u'2017-04-22 08:38:32'}, {u'user_id': 3605, u'title': u'Hangout', u'comment_id': 26675, u'content': u'Sorry I missed the email!
\n\nYes, I will gladly connect tomorrow for the hangout
Hi @Damiano so you should\'ve received a confirmation for OpenVillage attendance at this point. Are you up for discussing your panel more concretely? Someone in Brussels whom you could consider inviting is @Timebank.cc_BXL .
\n\nWe are lining up community and guest curators\xa0to work on each session and make sure it makes it into the draft program we are about to launch. The weekly Wednesday calls are dedicated to work on the sessions. We meet at 18:00 CET tomorrow. Are you guys up for it? @Damiano \xa0, @ewoudvenema and others.
\n\nThis is the link to the hangout,\xa0see you?
', u'post_id': 6300, u'date': u'2017-05-30 11:11:00'}, {u'user_id': 3605, u'title': u'Creating new realities', u'comment_id': 22115, u'content': u"nice project!
\n\nFor what I see there are so many valuable initiatives around the world, the main issue is that there's lack of funding for them and the general overload of informations makes it very difficult to understand what is important and what is not.
\n\nIf we want to reach a profound change in this society we should aim to create new innovative form of credits that promote pluralities and radical new ideas while giving enough security to people that trace alternative paths.
\n\nSharing economy platforms could be used to power these activities because they unlocked a large number of resources that could be redirected towards projects thanks to a crowdaction.
\n\nP.s.
\n\nI will probably live for some weeks in the netherlands this summer, let me know if you want to meet!
", u'post_id': 6300, u'date': u'2017-05-26 14:43:01'}, {u'user_id': 3643, u'title': u'Common creations & relating', u'comment_id': 19865, u'content': u'Hey @damiano,\xa0
\n\nI like your questions and experiences with fairbnb. I\'ve also been thinking about this topic and share some ideas and perspectives on\xa0http://creatingnewrealities.co/creating-new-realities/.\xa0
\n\nMy perspective is that there seem to be natural relationships to property and things, even if they are temporal. So I\'d like to introduce this element of relationship into the equation for commons. I\'m also interested in exploring this topic further and create a software/ community/ commoncreation tool to support the natural relation to our creations and possesions.\xa0
\n\nAnother aspect that relates to this is the topic of access of ownership. Which is another way of relating. I\'d like to experiment with this in the forms of networks and platforms. Curious how you feel!
', u'post_id': 6300, u'date': u'2017-05-20 10:09:09'}, {u'user_id': 3605, u'title': u'Future of healthcare and SV giants', u'comment_id': 18104, u'content': u'Hello Albero,
\n\nI think that opencare was meant as a broader topic, indeed for me, inequality is strongly related to health.\xa0
\n\nThe wealth that gets drained, without taxation, by platforms could/should be used to power many initiatives that are related to social care.
\n\nAlso, the same giants that are in control of the dominating platforms are the one that we should fear more in the healthcare industry.\xa0
\n\nCalico, a company that will tackle aging, is owned by Google. In general, the Silicon Valleys\' company are investing a lot in Biotechnology and Healthcare, and this is because they know that they can dominate this sector.
\n\nWe are in the Omics Era https://www.slideshare.net/swamihetal/omics-era, data are crucial and will lead in the coming 10/20 years to have personal medicine and gene therapy that could lead to an unprecedented extension of human lifespan.\xa0
\n\nBig tech companies are the ones that know better how to harness information from data, that\'s why they know that they are going to compete with hospitals and with nationals public health sectors.
\n\nIn general, I think it\'s important to analyze problem in a non-reductive way and that we should learn as much as possible on platforms\' topics and counteract where we still can,
\n\n\xa0but it could be a good idea to have also focused on health related platforms and companies (e.g. 23&me that do private analysis on DNA etc.)\xa0
', u'post_id': 6300, u'date': u'2017-05-18 08:49:11'}, {u'user_id': 4, u'title': u'About care?', u'comment_id': 16044, u'content': u'Hello @Damiano , indeed this is a very important topic.\xa0
\n\nDo you have in mind any examples close to health and social care? I can\'t think of anything right now, but it must be my own fault. Is there the "Uber of health care" out there? There must be. And conversely a platform cooperativist alternative to it?\xa0
', u'post_id': 6300, u'date': u'2017-05-14 15:32:18'}, {u'user_id': 3605, u'title': u'Hello @Nadia, thanks! Is a real pleasure to ', u'comment_id': 11398, u'content': u'Hello @Nadia, thanks! Is a real pleasure to e-meet you.
\n\nI think this is one of the most urgent topics that needs to be discussed and it\'s where our actions can make a real difference.\xa0
\n\n@peteratomic hello! I met someone from Resonate at OPEN2017, it was you?
\n\nIn this comment https://edgeryders.eu/en/comment/27263#comment-27263 , I highlight a strategy for the activation of the platform.
\n\nBasically, for and Airbnb-like platform is good to use this system because you don\'t have to maximize the benefit of the peer producers (as it should be for Uber for example). You can maximize the benefit for the society (for this reason fairbnb should be a common, not owned just by certain users e.g. hosts).
\n\nThere are many reasons why Airbnb fit and on why it should be the platform to target in order to attempt to change the digital economy.
\n\nI have been thinking and studying a lot and I would love to write about it. I made some months ago the structure for a green paper call "Overthrowing Power, one Platform at a Time" https://docs.google.com/document/d/1aeZAdKdbF1N2hexDO8VMqlzN6XUofumpQW2KTAgHwPw/edit?usp=sharing .
\n\nif someone is interested in developing this, it would be a pleasure to do it .
\n\nHere there are some articles, that I found interesting, on platforms (related to the technical part and on growth hacking/critical mass in particular) https://workflowy.com/s/fRXqUUze22
\n\nWe also did an Horizon2020 call (we didn\'t win) but is a huge work and I can share it if you want.
', u'post_id': 6300, u'date': u'2017-05-11 22:18:46'}, {u'user_id': 8, u'title': u'Interesting and highly relevant', u'comment_id': 7437, u'content': u'Hi Damiano, and welcome
I\'ve been following this discussion with interest. @peteratomic knows ALOT about the practicalities involved as he is building a\xa0cooperatively owned music streaming platform. In my mind there is a kind of matrix: Kind of asset being traded (material, immaterial) on the one hand, vs timeframe (the initiation, getting it up and running, and long term stewardship). A major outcome from one of our previous events is the idea of market failures in the sharing economy. I know @rmchase has done a lot of thinking about this topic, much of it informed by her experiences in building e.g Zipcar...
', u'post_id': 6300, u'date': u'2017-05-09 10:42:28'}, {u'user_id': 3615, u'title': u'reply @alessandro_contini', u'comment_id': 24217, u'content': u"p.s.
\n\nAlessandro,\xa0I'm also interested in approaches where the data entry\xa0becomes organic, integrated in your routine, almost happening in the\xa0background. i.e. a wonderful UI UX.\xa0
\n\nI will like to anticipate what the app will become in the later phases and start to design the interface and the system in a way that more modules can be integrated later on. I\u2019ll definitely like to deliver a smooth user experience.
", u'post_id': 837, u'date': u'2017-05-29 23:33:22'}, {u'user_id': 3615, u'title': u'reply @alessandro contini & @Alberto', u'comment_id': 20905, u'content': u'Hi\xa0Alberto, hello Alessandro,
\n\nhow nice to find feedbacks! happy to try to answer to your questions. Sorry Alberto, I missed your\xa0comment and noticed it only now. As Alessandro points out the project is divided in several phases.
\n\nIn the first phase we want to make it really easy and doable. So the system will contain lists of foods and their degree of histamine, as for example:\xa0
\n\nCarrots, Broccoli, Fennel = Low Histamine
\n\nTomato, Orange, Kiwi = High Histamine
\n\nCoffe, Garlic, Grapes =\xa0sometimes tolerated
\n\nThis are informations\xa0that\xa0anyone can find online but while at the supermarket or while choosing\xa0your ice cream flavour, it is handy to have it quickly ready all together in an app.
\n\nThe first phase of the app will also contain a list of\xa0Common symptoms: Headaches, migraines,\xa0Vertigo, dizziness,\xa0Abdominal cramps ecc.
\n\nAnd it will allow the user to check symptoms and associate them with foods into a diary/calendar system.
\n\nThis is handy in case the user wants to reintroduce a food or wants to monitor the effects\xa0of some food that are sometimes tolerated.
\n\nIn the first phase of the app the system will not ask many questions nor give too many informations.\xa0It will mostly be a structured tool for annotation that will empower the personal\xa0awareness of the user.
\n\nThe app \u201cClue\u201d (menstrual cycle tracking), is a very good example in this terms, it doesn\u2019t\xa0do much next to allowing women to structurally note down dates and\xa0symptoms, yet it is a powerful tool of awareness.\xa0
\n\nThe\xa0data-analisys will only enter \xa0in the\xa0second phase. For this there will be some work to be done to design the interaction between what we find trough the data, the assumptions we already have, our approach on care, and the collaboration with practitioners and medical experts.\xa0
\n\nI\xa0hope\xa0that\xa0I\xa0have answered your questions and please let me know,\xa0I am happy to answer if there are more questions.
', u'post_id': 837, u'date': u'2017-05-29 23:22:31'}, {u'user_id': 3143, u'title': u'Thanks Deborah + some considerations', u'comment_id': 15751, u'content': u'Thanks @deborah_ligorio for your application!
\n\nI agree with @Alberto that the approach is in line with the OpenCare ethos and practice, cool
I have some questions but I will try to first off reply to Alberto by interpreting the text above: to my understanding the idea behind the digital service is one where in a first phase the experience is initially one-to-many and the users are receiving feedback,\xa0but what they are actually mostly doing is feeding some kind of artificial intelligence that will generate the knowledge about the specific intolerance. the many-to-many kind of interactions will come at later stage as a consequence of the first phase.
\n\nOn a side note, I would be interested to know if you (Deborah) have already thought about the interaction of the main task: adding the data\xa0tailored to your specific situation.
\n\nIn my experience, even when the committment is pretty high (meaning the tool can for instance improve the quality of your life), a system that involves a lot of data entry tends to have a short life cycle, (unless the feedback is clear and constant and meaningful).
\n\nI\'m very interested in approaches where for instance the system knows when is the right time to ask you for the data, or in general where the data entry becomes organic, integrated in your routine, almost happening in the background.
\n\nI will check the apps that you have linked, lately I have been looking at "Headspace", it\'s a different field but there can be some interesting insights there.
\n\nLast, I would suggest you to check\xa0https://edgeryders.eu/en/allergoki#comment-27544, there could be an interesting bond between the two concepts.
\n\nciao
Hello and and a belated welcome, @deborah_ligorio . I have managed to miss your post \u2013 seems like great work, congrats!
\n\nThe idea of understanding one\'s\xa0own histamine intolerance seems sound, and is in line with what a lot of people in OpenCare are doing: refocus on preventative health. A question: I cannot quite understand if you have in mind a one-to-many interaction between the app user and the app provider (food diary goes into the phone, advice/feedbck comes\xa0out), or a many-to-many interaction between users. Can user A see the diary of user B? Do\xa0they interact? What are the mechanisms of interaction, and how do they help users to learn how to use their bodies?\xa0
', u'post_id': 837, u'date': u'2017-05-24 21:50:29'}, {u'user_id': 3605, u'title': u'Projects, countryside and suburbs', u'comment_id': 25049, u'content': u'I agree with you about the projects. Studying crowdfunding and charity there are some rules that help: people like "successful" initiative (the achievement of a specific goal that adress a specific need), to produce a somehow quantifiable contribution (for this reason the pledge should be done directly by the users) and to have some choices (this reinforce engagement part).
\n\nI think also this model would help us to involve smaller organizations that could be more willing to support the promotion activity for fairbnb.
\n\nFor the support of Fairbnb outside big cities, I think two are the consideration needed:
\n\nThe first is that Fairbnb should help valorize places that are underrated.
\n\nFor example, I\'m from Italy (from Rome) and in my opinion, there are so many little places that are worth visiting, is really upsetting knowing that just a few cities here have the attention of international travelers.\xa0
\n\nFor example, I rarely suggest to go in Rome (especially if you are young), go to Sicily if you can :)!!
\n\nMore in general the money generated through the Fairbnb system are split 60% goes around the area where you traveled (it can be the entire region) and the other 40% can be given to any project inside the platform. I think the problem could be addressed with specific calls for this projects in those places.
\n\nI recently randomly read this book http://www.goodreads.com/book/show/13086.Suburban_Nation that I suggest often and that gave me a much deeper knowledge of suburbs.
\n\nFor the countryside, I think that the tendency of the people from this places to go in the major cities could be reversed (especially in Italy) since cities don\'t represent any more a place of opportunity.
\n\nThis is a much broader argument, but I hope that the platform that we are building could help to experiment new models to solve problems related to this places.
', u'post_id': 829, u'date': u'2017-05-26 14:32:35'}, {u'user_id': 2569, u'title': u'Really interested in following this project.\n\nIt seems that ', u'comment_id': 24694, u'content': u"Really interested in following this project.
\n\nIt seems that you've really put some thought into how this could work.
\n\nI see a couple of parallels between the service platform and a couple of initiative that run in the UK. I wonder if there's some extrapolation that can be taken from them.
\n\nFirstly, many supermarkets in the Uk have charity partners in the local community. They hold them for 3-4 months each. Every shopper who spends over a set amount (i think it is \xa320) is given a small plastic token. They are then encouraged to drop these tokens into a box by the main doors, selecting one of the 3 charities to recieve their donation.
\n\nAt the end of the period the tokens are collected and counted and all the charities recieve the amount of money that has been donated to each box from the supermarket company. Its a basic mechanism and it only raises small amounts of cash, but the charities are often very small. Also, (and i think this ties in with your idea in a comment above) the money raise goes towards the delivery of a specific project or purchase.
\n\nIt is often the case in the UK that fundraising from grant making charities is tied directly to projects. It is very hard to get funding to cover ongoing overheads, and business expenses.
\n\nI think that this model would work best with the Fairbnb platform. People chosing to use the platform as hosts and 'customers' would be able to see the successes that funded projects provide,. I assume that a large section of the platform would be dedicated to sharing the success stories with the service users?
\n\nI know i would look to use a service like this instead of an airbnb service if it were available.
\n\nI guess my question would be what plans do you have for encouraging participation in the platform outside of major cities? I can foresee that these are the areas where uptake of new platforms are often slowest, but that they are often areas with high levels of charity support and high levels of poverty. I'm thinking for example of an area like Cornwall in England (high use of holiday lettings and airbnb style accommodation, but also high levels of regional un/under-employment and low levels of Government engagement in service delivery)
", u'post_id': 829, u'date': u'2017-05-18 13:24:02'}, {u'user_id': 3605, u'title': u'Long term support for projects', u'comment_id': 23282, u'content': u'I don\'t have a fully formed idea, but I thought that projects that did well after the first crowdfunding could get back on the platform after 1 or 2 years.
\n\nAlso, the projects after funded should remain in a dedicated part of the platform to keep updated the community, and there anyone is free to donate more whenever they want.
\n\nWe need a little money to finalize the platform. Anyway, the activation process has said have many steps. The choice on how to redistribute part of the value generated by the users is made by them deciding to which project pledge their money. This could be also done by Hosts but not in the same % because will have too much "power" and the risk is that they will favorite projects that they know personally.
', u'post_id': 829, u'date': u'2017-05-18 08:59:56'}, {u'user_id': 3362, u'title': u'Sustained effort', u'comment_id': 23259, u'content': u'Though I value the merit of doing stuff on a project basis as you describe, I also think for the complex issues like education, housing, medicine, sustained effort is needed. An overly large focus on well-defined projects limited in time risks perpetuating\xa0a \'quick fix\' narrative and devaluating\xa0sustained\xa0effort\xa0that is not as \'sellable\', in my opinion. I believe in a healthy mixture and I see most funding initiatives now focus on the project model, so I advocate for more of the long-term view.
\n\nThat being said: it\'s a big idea, but worth pursuing @Damiano .\xa0Say that you needed to choose one aspect (eg. connecting projects to hosts)\xa0and test it by the end of next week, what would you do?
', u'post_id': 829, u'date': u'2017-05-12 16:15:00'}, {u'user_id': 3605, u'title': u'Projects and hosts', u'comment_id': 23217, u'content': u'Hello @winnieponcelet : for projects, I think that having initiatives with a definite amount of money, spent in a certain way to achieve something defined, is more catchy than sustain the normal activities of an organization\xa0and is also easier to avoid that money\xa0are not spent in the right way.\xa0
\n\nSo with ReGent you could apply for example to buy a camper and instruments to go around the city to do biohacking in schools. It should be for activity that is not normally done by the association (this may be different in places like Syria, etc.). \xa0
\n\nOne of my goals is to allow plurality, especially for new initiative is always hard to find funding.\xa0
\n\nAnyway, this is something that needs to be discussed in depth, the nice thing about this is that it will create a perpetual passive funding that could literally enable thousands of valuable projects to reach their goals.
\n\nSo about the host you pointed out an interesting thing, the model that I described is focussed more on projects and travelers than on hosts.\xa0
\n\nI was thinking about something like having the host deciding a single project to "pledge", and it will gain 1 extra day on the crowdfunding platform.
\n\nThis will create an incentive to find more accommodations and will engage more hosts.\xa0
\n\nMaking host deciding in large part where the money generated through their apartment goes risk to create a system where people support the project of their friend or something that they have an interest in.. But of course, it\'s possible to imagine also another way to let hosts support more a certain cause.
\n\nAlso, I proposed a model for the organization that is based on three levels:
\n\nFoundation (Take care of the platform in general and connect the global community)
\n\nNational Associations (Help to select projects and to develop the organization in each state)
\n\nLocal Cooperatives (A group of citizens can apply to become a cooperative, it will have dedicated projects on the platform for that particular city, the aim is to do project together maybe about certain topics).
\n\nI would like to share more on this, in my opinion a worldwide mobilization on those\xa0themes is very needed. Platforms have become the main infrastracture for the economy, we should act now where\'s still possible to make a change or we will be trapped:\xa0it will be harder and harder to compete with existing one (due to their network effects, data collected, availability of money, etc)
\n\n@noemi yes, but project will stay on the crowdfunding part of the platform for a limited time, so that new projects can join.
', u'post_id': 829, u'date': u'2017-05-12 13:34:15'}, {u'user_id': 3362, u'title': u'Interfacing for projects', u'comment_id': 23131, u'content': u'Cool, this latest post of yours is basically what I was thinking reading the posts so far @Damiano . To leverage the fact that projects stand to win from it. I would focus on existing projects as first target group, as they have a good network usually, probably need money and will also put it to best use. In my opinion efforts are sometimes too much focussed on launching new things, instead of helping existing ones sustain themselves.
\n\nWhat you are then doing is interfacing for projects to monetize excess capacity in their network. Instead of having to invest heavily into logistics, marketing, sales, everything that comes with selling something, you can rely on a \'service\' like yours.\xa0I think this ties in nicely with\xa0the discussion here on business models for The Reef. Diversity is hard to do early on, but interfaces make it a little easier.
\n\nOffering this service to a social project rather than a person (what Airbnb does) offers some more interesting possibilities, especially in the way you set this up. What if people can\xa0choose to \'bind\' their room to a specific cause, donating most of the returns\xa0to that project? You could have, eg. for ReaGent where I am involved, a ReaGent branded accomodation service, hosted inside Fairbnb? Will projects then shift more and more towards mobilizing their community to help in non-material ways with excess capacity? Does this allow/force/nudge projects and their stakeholders to be stripped down to the very essence: a community with a certain mission, with a lesser focus on the means to an end?
\n\nJust some quick thoughts and a lot of questions, it\'s a super interesting topic. Would love to hear more, but mainly see things prototyped.
', u'post_id': 829, u'date': u'2017-05-12 11:08:29'}, {u'user_id': 3, u'title': u'Putting the projects at work', u'comment_id': 22088, u'content': u'I like this, basically ensuring that those primarily\xa0benefitting from your model become early movers, champions, promoters. Your success is their\xa0success.
', u'post_id': 829, u'date': u'2017-05-12 07:36:18'}, {u'user_id': 3605, u'title': u'Hello @Shajara, thanks for the comment.\n\nI will speak ', u'comment_id': 20627, u'content': u'Hello @Shajara, thanks for the comment.
\n\nI will speak just as Damiano because we still need to vote things on loomio.
\n\nThe growth strategy that I propose is bonded to projects.\xa0
\n\nI will underline here the basic principles.
\n\nSo Airbnb as just two main actors:
\n\nHost and travelers
\n\nFairbnb should have three:
\n\nHosts, travelers, and projects.
\n\nBasically, I see the MVP as an Airbnb with an additional feature, an easy system to crowdfund projects on the platform (60% local 40% from wherever you want).
\n\nThe fees will be more or less the same as Airbnb, 15%:\xa05% will be used to cover costs for the service, 10% will be allocated to projects directly\xa0by the travelers.
\n\nThe trick is that the 10% that goes to projects will bring users.\xa0
\n\nThe idea is to maximize the intrinsic and extrinsic motivation for users and let everybody be connected with the goal of the platform, in particular, projects will allow the organization to grow, scale and create a widespread mass of users.
\n\nBonding our initiative to hundreds of others will create that crowd-powered process that is needed to achieve the critical mass without relying on VC money.
\n\nTo offer a decent service and try to trigger the network effect at the beginning around 5000 accommodations are needed, distributed in all the major cities.
\n\nThe process I see is this:
\n\n1) Looking for 1000 projects (independent, possibly new, diverse to give everyone the chance to support the cause they care most). \xa0
\n\nThis will be hosted on the platform for a certain amount of time\xa0and with a minimum and maximum goal (e.g. 5k-20k euros) when the platform will open.
\n\n(I see the selection done thorugh\xa0an open call in different countries to have a worldwide coverage)
\n\n2) During the call and for two months after the selection the platform will be open just for hosts to register.
\n\n3) Projects will help to find at least five accommodations in their city.
\n\n4)\xa0The platform will open to everyone.
\n\n5) Boicott Airbnb campaign,\xa0start a serious\xa0public debate with action (put the initiative\xa0as an anti-capitalistic model\xa0that could compete with the existing one)
\n\nBasically 5000 accomodations will solve the chicken and egg problem.
\n\nWith an average per night of 28 euros\xa0
\n\n5000 * 28 * 31 * 10/ 100000
\n\nIt\'s an average of 434 euros a month for each project.
\n\nThis growth strategy is like the basic to avoid failure at the beginning, because I think it\'s possible like for everyone to find five people that will put their accommodation on the platform.\xa0
\n\nThis strategy should be integrated with all the "traditional" strategies.
\n\nThe community that will form will be capable of doing much more.\xa0
\n\nThe value proposition is easy to understand, if you travel with Fairbnb you do good by traveling (in a quantifiable way) instead of giving money to some billionaire.
\n\nI think\xa0is really important to involve\xa0networks like Edgeryders, Ouishare, Global Changemakers, etc
\n\nHosting 5 projects for every organization will help to crowd-power the activation of the platform and engage existing networks that have been thinking about world\'s challenges a lot.
\n\n--
\n\nThis is basically how I see the activation process.
\n\nLots of people that use Airbnb use also other platforms (they are multi-homers) so probably both @NOEMI
', u'post_id': 829, u'date': u'2017-05-11 21:23:58'}, {u'user_id': 3, u'title': u'Is it the same users switching or new "market" ?', u'comment_id': 17424, u'content': u'I think @Damiano & co. are not planning on charging more, but less.. maybe only to cover overhead in the beginning and then socialising the community into paying gradually more to support initiatives being funded?\xa0
\n\nIt\'s basically breaking down the offer into pieces - some could be attractive to some people (those needed to change service), some to others (who are the real supporters for the service).
\n\nWhat does one need to tap into in the incentive system, well that looks very ambitious. I\'m not sure what is a good incentive -\xa0I agree that a lower commission compared to other service providers does not cut it - especially since you are not so competitive in the market that the same user can get as much occupancy as with airbnb (following the logic of\xa0@Shajara \'s\xa0driving example).
\n\n@rmchase should know better or maybe has advice?
@Damiano, thank you for sharing your ongoing work and thoughts here! It reflects something I\'ve been considering a lot lately, which is how individual spending choices can be used to reflect and support our values.
\n\nI think a platform like fairbnb\xa0will be a great alternative to those who don\'t agree with some of Airbnb\'s practices but still need an affordable place to stay. Like you said, currently, these platforms are indispensable. The one thing I was wondering about though, is how you plan on recruiting the people who actually provide the service over to these new platforms?
\n\nThe reason being is that the people who choose to share their homes or cars with others are often already on these other platforms and until they start to move over to new platforms there is no way for I the user to actually access the platform. I.e. I can\'t order a ride when there is no driver available.\xa0
\n\nI was wondering if some of the money that doesn\'t go to overhead would result in slightly larger pay for the service providers? Of course, this then cuts into the amount of funding that could go\xa0towards new initiatives. I think this reflects some of the thoughts from this talk by Dan Pallotta,\xa0namely that we are hesitant to use money as an incentive to create more business\xa0in the non-profit sector.\xa0
\n\nOverall, I think this type of platform is a timely and needed development. I\'m curious your thoughts on how to address the needs of these\xa0key stakeholders?\xa0
', u'post_id': 829, u'date': u'2017-05-07 16:18:46'}, {u'user_id': 3605, u'title': u'Nice to e-meet you too! At the moment ', u'comment_id': 10667, u'content': u'Nice to e-meet you too! At the moment I\'m living in Milan, but every week I spend some time in Rome and in Bologna.
\n\nReally interesting post, thanks! Full of insights, I jumped several times through a stream of articles during the reading .
I do agree that until we figure out how to create valid alternatives, current platforms are indispensable.. there\'s no wayback... That\'s why we need to act to create a fairer digital economy where interests of people are central instead of profit, some of this platforms are almost impossible to create an alternative to, others I believe not.
\n\nCompetition between a non-extractive and an extractive platform is somehow like David against Golia.
\n\nI think the key is to pick the right platform and to craft the perfect strategy that enhances intrinsic and extrinsic motivation for the users.
\n\nFor some reason (community-driven, aggregation platform, P2P are ordinary people, it produce lots of wealth by unlocking unused resources) I see Airbnb as the most suitable.
\n\nFor the strategy, the only real competitive advantage is, in the end, that % that get subtracted to every transaction.
\n\nThe % needed to merely run a platform is always much lower than the one taken, lots of this money are used for advertising, paying managers, and the majority of it become profit (this is true for platforms that have a solid business model ).
\n\nIt\'s how this subtle but substantial amount of money is used in an alternative way that could make the difference.
\n\nBasically the money that is redistribute helps the platform to grow and\xa0it lower the\xa0Custumer Acquisition Cost in a platform that don\'t require a huge amount of users to reach the critical mass.\xa0
', u'post_id': 829, u'date': u'2017-05-06 18:40:30'}, {u'user_id': 3, u'title': u'How do you deal with market failures?', u'comment_id': 10494, u'content': u'Fun thing:\xa0only at the end of the article did I understand that FairBnb is about accommodation!
Nice to meet you @Damiano , thanks for contributing on what is definitely a hot topic. Can\'t believe years passed and more open and fair\xa0solutions are coming forward so hard. In the meantime, we use what we have.. (I have to say even if I\'m not an uber fan it did its part when I needed it most - aka getting stranded at night\xa0in a foreign city, having not many options/money to connect to a cab service).
\n\nIn 2014 edgeryders fellow member @jimmytidey wrote a post about market failures in dealing with value exchanges (very fragile) and excess capacity being the key reasons\xa0why AirBnb and the likes have fertile land to grow. \xa0I liked it because it was critical, yet realistic. Curious if you have identified risks which you are facing in attempting to redistribute wealth in a fairer way..?
\n\nWhere are you based by the way?
', u'post_id': 829, u'date': u'2017-05-06 01:07:24'}, {u'user_id': 3362, u'title': u'Next time', u'comment_id': 28797, u'content': u'Okay, it didn\'t go through, looking forward to hear more next time on the 7th
I don't think any follow up is planned... I also can't make it tomorrow (also going abroad) so it'll probably be best to just postpone.\xa0
", u'post_id': 6308, u'date': u'2017-05-23 17:36:00'}, {u'user_id': 3362, u'title': u'Meeting tomorrow', u'comment_id': 28268, u'content': u"Is there any followup planned for the meeting tomorrow?
\n\nAs for technical stuff, there's not much news. Still waiting for final news from the samples &\xa0microfluidics will be for June. I'm also out of action due to medical reasons and Niek is abroad.
\n\nIf there's nothing new to be done or discussed, I suggest we get back at it on June 7th.
", u'post_id': 6308, u'date': u'2017-05-23 11:38:24'}, {u'user_id': 3580, u'title': u'boardgame', u'comment_id': 26678, u'content': u'What about a life-sized board game?
', u'post_id': 6308, u'date': u'2017-05-15 17:51:36'}, {u'user_id': 3587, u'title': u'About the boardgame idea...', u'comment_id': 24426, u'content': u'At the meeting last Wednesday we proposed a board game as an educational activity (@NiekD, did someone take more notes at the meeting? I have some but only about the boardgame). I\'ve talked more about this idea with my mother, who is a dietician and diabetes expert and she told me there are already some boardgames on the market. We have some at home but I didn\'t have time to study (or play)\xa0them this weekend. I\'ll try to bring them along to the next meeting. I still love the idea for a boardgame, but if several are already on the market, I don\'t know how useful it could be...
', u'post_id': 6308, u'date': u'2017-05-15 16:40:30'}, {u'user_id': 3362, u'title': u'Shame to miss it', u'comment_id': 20743, u'content': u'Shame that I missed it as well, was abroad. How did it go?
\n\nJust want to make the link with this thread again for inspiration and also plug this concept I learned about during the DIYbio Biofabbing Convergence earlier this week: reinventing the role of musea using more active methods & science (among which biohacking). Specifically, Ricardo, the speaker, mentioned the example of the Museum of AIDS in Africa. I\'d love to know more on how you could have a preventative impact as such an institution.
', u'post_id': 6308, u'date': u'2017-05-12 12:31:24'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 14828, u'content': u'Undisclosed content', u'post_id': 6308, u'date': u'2017-05-10 06:23:37'}, {u'user_id': 4, u'title': u"Can't make it", u'comment_id': 7247, u'content': u'Thanks for taking the lead in this, @NiekD. I am traveling this week, and won\'t be able to attend. But I will be reading the writeup from the meeting, and stand ready to help as best I can.\xa0
', u'post_id': 6308, u'date': u'2017-05-08 13:15:45'}, {u'user_id': 3, u'title': u'This thread is becoming immensely resourceful.', u'comment_id': 32290, u'content': u'I\'d like to explicitly, out loud,\xa0acknowledge the super ideas and contributions people have been bringing to this conversation. What months ago started as a shy question by Pauline about the relationship between creativity and mental illness became slowly a rich\xa0discussion on artistic education, creative angst and vulnerability in various professions and particularly\xa0how personal attributes like introvertedness, autism, ambition, self-deceit, psychological resourcefullness at large\xa0influence the\xa0wellbeing of our professional self. What depth!\xa0
\n\nRe-reading it all makes for some pretty deep reflection points on a Sunday afternoon.\xa0
\n\nThank you @Pauline | @Alex_Levene | @Maria |\xa0@Patrick_Andrews | @Altamirula | @steelweaver | @ybe | \xa0@trythis |\xa0@Georgiana_B. | @Alberto.
', u'post_id': 680, u'date': u'2016-11-13 13:15:00'}, {u'user_id': 4, u'title': u"Don't know much", u'comment_id': 32276, u'content': u'There seems to be some interesting stuff happening in fringe genres, like erotica and my favourite, hard sci-fi. But yes, that\'s anecdotal. I have dropped out of studying that stuff since, and moved onto greener pastures. Which itself is a kind of anecdotal analysis.\xa0
\n\n"Long tail" markets would feature many niches, each one with the economies of scale in consumption aforementioned, but making space for more artists just by virtue of being many. So your question is theoretically valid, but I do not know the answer.
', u'post_id': 680, u'date': u'2016-11-13 21:49:07'}, {u'user_id': 393, u'title': u'long tail?', u'comment_id': 32275, u'content': u'Interesting economic analysis, @Alberto. Is there any evidence that the \'long tail\' effect is changing things in artistic \'markets\'?
\n\nThere were a lot of promises a few years back that the internet would make many more people able to be sustainable successful at a smaller scale [curating a fanbase of a few thousand fanatically-loyal people, say, while presumably supplementing income from art with other jobs and roles], and I know of a few anecdotal examples of artists doing just that, but my general impression is that those promises were not delivered on.
', u'post_id': 680, u'date': u'2016-11-13 14:16:56'}, {u'user_id': 3, u'title': u'Changing professional paths', u'comment_id': 32274, u'content': u'The thing that is pretty scary to me is this idea of arriving at an\xa0end of it, figuring out where your path is gonna take you, or worse, like\xa0this guy in the video you shared says, discovering "what you\'ve been put on earth do do". I think starting off with that mindset is freakish..\xa0
', u'post_id': 680, u'date': u'2016-11-13 13:02:29'}, {u'user_id': 2551, u'title': u'Only 1 shift?!', u'comment_id': 32273, u'content': u'Here is a vid from a person from a very different milieu I think, and still there are many parallels. He\'s more expecting 7 shifts though:
\n\n\n\nYou can just watch 7 or so minutes, but perhaps @dfko would be interested in the whole thing - I could imagine there could be some mutual benefit in that approach as well.
', u'post_id': 680, u'date': u'2016-11-11 22:51:20'}, {u'user_id': 2551, u'title': u'The notoriously anxiety-inducing profession of writing', u'comment_id': 32272, u'content': u'Regarding "There seems to be something intrinsic about the creative craft that makes people doubt themselves completely. The tyranny of the white page could be well found in the white canvas \u2026 "
\n\nI am not someone who enjoys writing a whole lot, but let me share two items. The Dunning-Kruger effect probably explains some of this. It works indirectly though: Literacy is something that tends to draw an intelligent crowd. Those people tend to read material produced by other relatively intelligent people. If you decide you also have something to contribute, you will often feel like you\'d better not be one of the worst of authors (even though for mere mortals there may not be a realistic way around that - as most people just need the practice). That means people who actually decide to write are a tiny minority and probably quite far from the average. So in short: writing does not produce (particularly much) anxiety, but it tends to draw an anxiety plagued crowd. When I read how fairly prolific writers approach the task (journalists on reddit, or academics for scientific proposals) I was shocked by the lack of rigor and decorum.
\n\nThe other item I fould almost universally helpful and reconiling is a list of cognitive biases. For me it very much drives home the point that the mind really is a very messy thing that is quite dismal at some tasks and quite impressive at others. And we are probably very lucky there is a good deal of variation between people.
', u'post_id': 680, u'date': u'2016-11-11 22:30:25'}, {u'user_id': 4, u'title': u'You have time :-)', u'comment_id': 32271, u'content': u'Oh, you have plenty of time. I left professional music at 34. It was a struggle to get back to being a freelance\xa0economist, but it could be done. After a few lean years, I got a breakthrough at the age of 41. When I turned 45, I took on an international job and left the country. Another two years later I co-founded Edgeryders, and this year, at 50, the transition from\xa0freelance economist to working full time for my own company seems complete. 30 years, you\'ll probably change your professional identity not one, but twice. In fact, Edgeryders exists in part to provide a ramp to people that want to do this stuff. I took it head on, but it does not have to be lke that. Noemi will tell you more about this if you are interested.\xa0
In\xa0our current line of work there is some of the persistent, low-level panic of the artist\'s work, because there are fads in consultancy, and people hustle, and it\'s important to be seen in the right places. But the market is NOT winner-takes-it-all. Companies\xa0need help, and they can\'t all get the top ten guys in the business, because those guys can only sell 100% of their time.\xa0
', u'post_id': 680, u'date': u'2016-11-10 15:45:00'}, {u'user_id': 3479, u'title': u'costly naivety ', u'comment_id': 32270, u'content': u'Hi, @Alberto
\n\nThank you. I\'m new to the platform, indeed. I was kindly introduced to the thread by Noemi, my dear friend.
\n\nYou pointed out so well that being poor, scared and stressed out is as limiting as not practicing one\'s art as their profession! It\u2019s curious what makes people choose one or the other. One theory I heard recently at a sociology of arts conference was that people in these fields keep thinking that the next gig/exhibition etc. will be the big break. Costly naivety/ self-deceit \xa0
So, the theory you mentioned and the article you recommended are new to me and I find they describe aspects of the arts-market relationship, amongst others, very accurately. Thank you for sharing this with me! Before reading these, I was thinking about how creative fields and other\xa0professions, like sports, have some similar stress sources, and this was confirmed and explained by the superstar economy theory.
\n\nAs useful and valid this is, I think it explains things only in part. One idea that comes to mind is the notoriously anxiety-inducing profession of writing. There seems to be something intrinsic about the creative craft that makes people doubt themselves completely. The tyranny of the white page could be well found in the white canvas \u2026
\n\nBesides this intrinsic source of anxiety, which, again, I\'m quite uninformed about, I see a few more layers. As you were saying, Alberto, a strong one would be the characteristics of the winner-takes-it-all labor markets, and others might hover between the two, like self-belief, identity issues etc. I imagine a tension, a dynamic.
\n\nNoemi, you phrased it wonderfully talking about the pressures of "how to carry yourself in the world" as an artist. In particular, the fact that the distinction or the separation between art and life, professional and personal evaporate within the arts (from creators to art professionals) would be a generous source of tension.
\n\nOne question that crosses my mind: how much of this is penetrating within the non-creative spheres as side-effect of the creative turn, the requirement for creativity, the curated self, etc.?
\n\nBy way of conclusion -\xa0I\'m 30 now and I\'ve been practicing self-deceit and strategic thinking, in turns, for more than\xa05 years now. Reading your story, Alberto (thanks a lot @Noemi for the introduction, that was quite a read!), worries me\xa0that I have some time left for at least one shift
Georgi, here is Alberto\'s story as an economist turned\xa0musician turned policy expert. Pretty savory
I don\'t know if market skewness explains it all - it certainly makes sense. But from what people are saying here, it also has to do with professional identity and some ideas attached to it telling you what you should do as an artist or how to carry yourself in the world -which\xa0creates anxiety.
', u'post_id': 680, u'date': u'2016-11-08 20:03:11'}, {u'user_id': 4, u'title': u'Patterns of competition', u'comment_id': 32197, u'content': u'Hello, @Georgiana_B. \xa0, and welcome. I don\'t think I have read anything by you before. You make some excellent points, particularly that of artists sharing some of those stress-inducing working conditions with non-artists. You mention art workers; where I come from (Italy) there is similar talk around freelancers.\xa0
\n\nTrained as an economist, having been a professional musician for several years in the 1990s, I looked up economic literature about the arts. The intuition most relevant to your point (and the whole thread) is this: art is defined by economies of scale in consumption. It works like this. Imagine you like classic two guitars-bass-drums rock music. Well, that technology scales really well: you can enjoy a rock concert in a bar with an audience of 30 people, or in a football stadium with an audience of 80,000. The costs of giving a concert increases in the size of the audience, but much slower than the ticket revenues. If you double your audience, your profit does not double: it goes up fourfold, or even tenfold, depends on where you start. Markets with these characteristics are called winner-takes-it-all: they produce few superstars, with everyone else doing badly (Rosen\'s classic 1981 paper). While stars tend to be very talented people, it is simple to build a model that takes performers with\xa0identical\xa0characteristics, and then makes one or a few of them superstars, and discards the others. Initial lucky breaks are reinforced by the success-breeds-success dynamics. We need a hairdresser every ten blocks, because people go to different hairdressers. But very few stars, because we all watch/listen to/read the\xa0same\xa0ones.
\n\nNow, you\xa0really\xa0do not want to work in a labour market that makes superstars. Whoever you are, probability says that you are almost certainly a loser in the race.\xa0That\'s extremely stress inducing.\xa0But artists do work there. And so do others, as you point out.\xa0
\n\nTentative conclusion. Maybe it\'s not creativity that is stressful: it\'s the characteristics of winner-takes-it-all\xa0labor markets, including the one\xa0for\xa0artists. Implications: hard call. I fully appreciate that being creative in your spare time is limiting. But so is being poor, scared and stressed out. My own choice was relatively easy, given that I was obviously no artistic genius, and other things interested me just as much as music: I got the hell out of it after making it to midlevel (gold record in a secondary market such as Italy), but not to stardom\xa0
Hi everyone.
\n\nI can only speak for the contemporary art scene, which is the one I\u2019m part of and not for theatre or other subdomains of the creative field. I see two main directions in the discussion so far.
\n\nFirst, there\u2019s the question of creativity and anxiety being intertwined, and how to identify the moment when this anxiety crosses over to a dangerous zone for the artist; also, if this link is a given, how would we go about trying to keep an artist in the safety zone without hindering the creative dimension. Going back to what has been noted so far, the idea of the artist as troubled soul is rooted in the romantic definition of the artist, which I think has long been overcome within contemporary art (and made room for other sources of angst). Nevertheless, apart from this dated, unhealthy perspective, there might be an actual connection between the artistic predisposition and emotional volatility. I haven\u2019t read any studies on this topic, though I suppose this is a strong area of research and only after making sense of the results we might be able to think of strategies for improvement. These might be seen as issues concerning the psychology of arts, which I\u2019m not at all familiar with.
\n\nThen, there is the layer of high (or higher?) anxiety levels within the art world as a result of the pressures of the specific field. Here I\u2019m referring to aspects that could be integrated within the sociology of arts (which I have more understanding of) like rampant competition, status issues (the art world is strongly hierarchical), precarious living/working conditions, high levels of uncertainty (not only of day to day life but the artist\u2019s own\xa0sense of identity as an artist), market/ commercialization contamination and so on.
\n\nAt one point in his article The Curatorial Muse, Michael J. Kowalski writes: \u201cIt is acknowledged, though not often discussed in polite company until the third drink, that the arts are defined by the same Darwinian savagery as any another profession. It is also acknowledged that the aspiration of art to beauty and truth is a pious fiction, but in the best possible sense of the word. Finally, and crucially, it\'s acknowledged that these two characteristics of art are seriously and permanently at odds with one another\u201d. - (http://www.contempaesthetics.org)
\n\nOne important idea here is to note that these are not concerning artists only, but art workers in general. It\u2019s difficult for me to say if the levels of anxiety are higher in art that in other professions. A good point was made earlier that these might be found in any other field. My impression is, though, that fields in which creativity is profoundly linked with identity will always make for a more stressful environment. And for those that already identify with the psichological pressures of creativity, this later layer might be just too much to handle.
\n\nJust a few more personal notes: in my discussions with artists I found that many drop out from University because they can\u2019t take the pressure. It might be helpful to note that the myth of the emergent artist will bring the issues I identified before as pertaining to the sociology of art very early on in an artist\u2019s life \u2013 from the first years of university. This young age, one that is related to learning, experimenting, trial and error, finding one\u2019s path etc., has become a battlefield for launching careers. (My one experience brings this even earlier in life, being a child and a teenager trying to become a professional musician. I am one of those who could not handle the difficulties of a musical career at such an early stage in my life and lacking a good support system, so I quit. At present I work as a passionate art professional - curating, arts management, teaching, cultural PR - and I find the field highly demanding, but I feel I have more resources in myself to work my way through, than\xa0I did when I was a young musician.)
\n\nAnother key point in artists\u2019 lives that my friends who are painters pointed out to me is finishing their studies and trying to make a living through their art and not make compromises. The attention to each decision is overwhelming for most young artists: they need to make a living but most of the times their options put them in a compromising position they know they might not recover from, the art world being so much about reputation management and legitimation. Whenever I think of the contemporary art world I have in my mind the picture of a chess board. One needs to learn the rules of the game by playing, and you only get one round.
\n\nThe other day I was listening to Sarah Thornton, a sociologist of art who was pointing out that ever since Duchamp, the freedom of the artist to fashion herself as an artist is a demigod position that puts a lot of pressure especially on artists finishing studies, whom\xa0are very much aware of the responsibility of designating themselves as artists. Many would not use the word artist, Thornton notes, and when asked what they do, they say \u201cI do work\u2026\u201d
\n\nOf course, older age comes with its own anxieties within the arts, namely the obsession with youth...
\n\nBut to conclude, I\u2019d say that once clarified what aspects you guys are more interested in working with, there would be specific/ specialized ways to enable care and help. It might be that it is not even relevant if the creative field is more prone to anxiety than others, but wanting to reduce these big emotional costs would require a particular approach, one that suits the idiosyncrasies of the field. I\u2019d be very interested to contribute within my own area of knowledge and experience -\xa0I say there\u2019s a strong need for open care structures here.\xa0
', u'post_id': 680, u'date': u'2016-11-08 11:37:19'}, {u'user_id': 3468, u'title': u'The traumatized self healing artist myth', u'comment_id': 31535, u'content': u'The theory @ybe has contributted is a very accurate example of the destructive narrative I was talking about in the first place.\xa0
', u'post_id': 680, u'date': u'2016-10-27 09:18:41'}, {u'user_id': 3403, u'title': u'view of a psychotraumatologist
', u'comment_id': 31148, u'content': u'What an interesting discussion, thx to you all. I agree that stress and suffering are part of life @noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.\xa0
\n\nIn general, I think of art and creativity as an expression of oneself, an expression of our inner world, our \'being\' in the world, our being \'me\'. Being authentic is by definition being different from others and thus coping with judgment,\xa0 the others , the outer world goes along with it.
\n\nBut I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a \'symptom\' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.\xa0 This disconnection is trauma, the residu of pain. In my vision many artists are trying to \'heal\' themselves through their art - redefine themselves, trying to find a way to become \'whole\' again - integrate pain and trauma. Artists are often \'self-healers\', they are their own therapists.
\n\nWhen the self-healing fails, they might consider exploring the pain and trauma trough different glasses - those of a therapist. Thinking out of the box could help them cope better
This is the more or less classic, freudian, psychological explanation for \'artistic pain\'.
\n\nThere is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our \'acorn\', that we are born with a \'mission\', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment/youth/parents... We should instead in therapy look more for \'the inborn authenticity, the inborn self\'.
\n\n(If interesetd in this latter explanation: See Stephen K. Levine: Trauma, Tragedy, Therapy: the Arts of human suffering (quite a philosophical, demanding book - but very interesting out of the box view for therapists )
Hope this helsp as a theoretical frame @Pauline
\n\n', u'post_id': 680, u'date': u'2016-10-25 15:46:22'}, {u'user_id': 3, u'title': u"I'm less of an expert than you, but", u'comment_id': 30885, u'content': u'Maybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.
\n\nI\'ve also invited an art curator friend of mine to join the discussion, and see what she makes of this.
\n\nI\'m sorry about your dear one. I wonder: if this is so generalized, what support systems are out there for artists then? do artistic collectives or platforms have a contribution to make here or rather more diverse social environments?\xa0
', u'post_id': 680, u'date': u'2016-10-25 08:12:11'}, {u'user_id': 3468, u'title': u'HI\xa0@noemi, sorry it took me so long to ', u'comment_id': 30608, u'content': u'HI\xa0@noemi, sorry it took me so long to answer you, I\'ve been traveling. I was trained as an sculptor in Madrid in the \'90s and I found\xa0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\xa0I knew I had had enough when a\xa0very dear person to me committed suicide. I\'ve had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\xa0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\xa0and how we teach art\xa0leads me to think that we in Europe need to overcome this tragical\xa0tradition. I wish I could give you more to pull the thead, I really am no expert!
', u'post_id': 680, u'date': u'2016-10-24 22:02:59'}, {u'user_id': 4, u'title': u'That one', u'comment_id': 30514, u'content': u'Yes, that\'s the document that @steelweaver might be interested in reading. I certainly found it illuminating.\xa0
', u'post_id': 680, u'date': u'2016-11-13 13:36:52'}, {u'user_id': 2551, u'title': u'here is the comment', u'comment_id': 30513, u'content': u'Alberto was referring to https://edgeryders.eu/en/comment/18173#comment-18173
', u'post_id': 680, u'date': u'2016-11-11 22:53:25'}, {u'user_id': 2551, u'title': u'Sry for late comment', u'comment_id': 30502, u'content': u'@Alberto s mention slipped the radar there. Funny enough I was just procrastinating by listening to a video on procastination. I think it is long and general enough that various people could get something out of it. Just to address the "getting things done" angle.
https://www.youtube.com/watch?v=KysVad2dr-c
\n\nOn face vs screen, etc. I think you are right that certain methods work better (or just more comfortably?) with some people (on some topics). You\'ll get different discussions and different outcomes. I think face to face helps my mirror neurons fire up fully. I often feel I can only really fully develop many aspects of a thought in a discussion. On the other hand I also like to listen to a recorded discussion afterwards and focus my thought much more on certain aspects without being afraid I have to answer some question or lose track of a discussion. I can be fully in observer mode and my thinking is much more like if I am editing someone else\'s text and want examine and fix every little bit of imprecision.
\n\nAnother thing that could make face to face meetings different is that you can smell the person and the environment. Also a LOT of our nervous system is connected to the stomach/digestive tract (the face and brain came way later!) so I would not be surprised if there is more purpose to business/conference dinners than to knock out the prefrontal cortex a little (althought that can also help).
', u'post_id': 680, u'date': u'2016-11-11 21:51:09'}, {u'user_id': 2569, u'title': u'fully agree with that sentiment. face-to-face produces something ', u'comment_id': 30483, u'content': u"fully agree with that sentiment. face-to-face produces something tangibly different but equally as powerful as shared 'head space' online
", u'post_id': 680, u'date': u'2016-10-31 18:35:56'}, {u'user_id': 393, u'title': u'face to face', u'comment_id': 30441, u'content': u'"I am not so sure that things get done in meetings"
\n\nHa. You may have a point there!
I would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.
', u'post_id': 680, u'date': u'2016-10-26 12:17:03'}, {u'user_id': 4, u'title': u'Echoes', u'comment_id': 30315, u'content': u'@steelweaver , I just wanted to say that your\xa0piece on introverts is highly reminescent of @trythis \'s own thinking around the same matter.\xa0
\n\nMe, I am not so sure that things get done in meetings, nor that real world meetings are more likely to lead to real world actions. But your point stands: collaboration environments that are friendly to introverts are a good thing.
', u'post_id': 680, u'date': u'2016-10-25 22:29:02'}, {u'user_id': 393, u'title': u'Sensitivity and emotional processing', u'comment_id': 29955, u'content': u'Fascinating thread.
\n\nOne question that strikes me is: shouldn\'t this be precisely what art school is about? Providing the freedom to engage deeply with such practices, to experience the emotional fallout of an intense creative life before a job or a commercial project is hanging in the balance?
\n\nCertainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice.
\n\nPerhaps just being given permission to experience these things and making space to check in with each other and have collective discussion about what is coming up would go a long way to avoiding people feeling that processing emergent emotional material is somehow wrong or unbalanced.
\n\nThis all also reminds me of how important it has been in recent years that people with \'non-ordinary\' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the \'normals\' about their own unique experiences:
\n\nWhether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority.
', u'post_id': 680, u'date': u'2016-10-24 13:05:37'}, {u'user_id': 3, u'title': u"What's your story?", u'comment_id': 29542, u'content': u'Hi @Altamirula, nice to meet you. Can you expand on this point about cultural differences? \xa0
\n\nHave you worked in Japan or experiencedvarious situations directly, or is is something you\'ve read about?\xa0
\n\nInterestingly,\xa0I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such\xa0personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can\xa0frame this question of different emotional responses even more specific to the art world, we can\xa0launch a challenge so that we can bring more domain insights. Let me know, I\'d be interested.
', u'post_id': 680, u'date': u'2016-10-24 07:53:33'}, {u'user_id': 3468, u'title': u'Cultural approaches', u'comment_id': 29064, u'content': u'My own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst,\xa0is a sad one. I have found some solace and the begging of an understandment\xa0of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.
', u'post_id': 680, u'date': u'2016-10-22 08:39:19'}, {u'user_id': 3, u'title': u'Challenge on mental wellbeing', u'comment_id': 24943, u'content': u'@Maria yes! The challenge itself is around mental wellbeing, and people (like Pauline above) write about\xa0connections they find interesting or helpful\xa0projects.
', u'post_id': 680, u'date': u'2016-08-30 06:03:37'}, {u'user_id': 3279, u'title': u'Connection between creativity and mental illness', u'comment_id': 23625, u'content': u'Hi @Noemi @Pauline, is this challenge ongoing?
', u'post_id': 680, u'date': u'2016-08-26 15:28:36'}, {u'user_id': 3253, u'title': u"Hi Noemi,\xa0\n\nyou make an important point, and it's ", u'comment_id': 21954, u'content': u"Hi Noemi,\xa0
\n\nyou make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of\xa0these issues popping up in our immediate surrounding\xa0during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right\xa0context to explore this\xa0or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much\xa0appreciated!\xa0
", u'post_id': 680, u'date': u'2016-05-30 13:13:02'}, {u'user_id': 3, u'title': u"I can't offer much, but maybe Finbar can", u'comment_id': 21301, u'content': u'Someone like me who is not a creative or art\xa0professional could simply read the emotional stress\xa0as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don\'t know.
\n\nHave you looked into art therapy or therapeutic gardening?\xa0Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and\xa0"an old soul" (we like to joke :))\xa0might be able\xa0to offer more\xa0advice. Hang in there.
', u'post_id': 680, u'date': u'2016-05-18 22:55:52'}, {u'user_id': 3253, u'title': u'Hi Patrick,\xa0\n\nnice to meet you and\xa0thank you so ', u'comment_id': 17386, u'content': u'Hi Patrick,\xa0
\n\nnice to meet you and\xa0thank you so much for sharing your brothers story! "I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape." Do you know of any good\xa0projects like that? Something like the\xa0Unmonastery perhaps, or are you thinking of something different?\xa0
', u'post_id': 680, u'date': u'2016-05-30 13:10:46'}, {u'user_id': 104, u'title': u'link between sensivity and creativity', u'comment_id': 16370, u'content': u"Pauline, your post made me think of my brother. At school he was artistic and a left hander, naturally talented at sport, and very sensitive (for example, he once walked into a house and sensed a ghost, which the owners later confirmed; another time, he avoided a major accident because he sensed something and changed his route on his motorbike). Life has been a bit of a struggle for him - he has pursued conventional success and it didn't suit his temperament and he complains about life being constant suffering (although sometimes it as if he seems to enjoy the suffering, otherwise why would he keep doing it?). He also drinks alcohol a lot - I have always asssumed this is because he finds life challenging, because he is so sensitive.\xa0 Having said this, he is still creative and charming and loveable. But he is hard to be with sometimes.
\n\nI think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.
", u'post_id': 680, u'date': u'2016-05-18 16:02:05'}, {u'user_id': 2569, u'title': u'Still thinking', u'comment_id': 13417, u'content': u'It\'s been quite difficult to work out exactly what my thoughts are on this subject. I\'ve found some of the comments below to be helpful and insightful, but some to be problematic.
\n\nThere is certainly a strong link through poetry and literature to this idea. I\'ve recently been reading a lot of Thomas Mann and it\'s almost the entire structure on which his work is predicated. There seems to have been a sensibility that was propagrated in the late 1800s -early 1900s European intellectual/artisan culture around \'bohemianism\' or latterly \'bourgouise\'. I think in some senses it emerges out of a combination of Romanticism (in poetry and visual art) and it\'s opposite reaction,\xa0Realism (in painting and literature) and the beginnings of the sentimental nostalagia-tinged\xa0classical music of people like\xa0Verdi and the German/Austrians like Liszt, Mendelsohn.\xa0
\n\nThe \'struggling artist\' becomes a trope, a series of hooks onto which musicians, writers and painters can hang their emotional responses to the world. The struggles of the artist can therefore\xa0be equated to the struggles of the working, pastoral man and woman, who often during this period are the themes on which the artist work. c.f Beethoven\'s 6th, Robert\xa0Burn\'s Poetry, Victor Hugo. Which becomes an important connection between the (usually rich, educated and entitled) artists and the philosophy of people like Rosseau and Locke who want to improve the human condition for all.\xa0
\n\nMore of a History of Art and Ideas response to the idea, and certainly not my final views on the subject, but i thought i\'d add a bit more to this already in-depth post.
\n\nAlso, worth having a quick read of this piece i found today:\xa0http://www.the-tls.co.uk/articles/public/literary-madness/
', u'post_id': 680, u'date': u'2016-11-24 10:35:57'}, {u'user_id': 3, u'title': u'"I hate my work" syndrome', u'comment_id': 13151, u'content': u'On a lighter note...
Very grateful for the material, @alan ! This is a very interesting missing, because\xa0the way @Pauline framed this is by talking about mental/emotional health in a broad sense. As usual, contradictory findings are involved in such a complex topic. But\xa0schizotypy is stronger correlated with creativity than a full-on\xa0mental condition, being\xa0a\xa0generalized trait in the population, and\xa0difft from schizophrenia:
\n\nmore creative people include more events/stimuli in their mental processes than less creative people. But crucially, they found that those scoring high in schizotypy showed a similar pattern of brain activations during creative thinking as the highly creative participants, supporting the idea that overlapping mental processes are implicated in both creativity\xa0and\xa0psychosis proneness.\xa0
', u'post_id': 680, u'date': u'2017-01-13 10:47:39'}, {u'user_id': 3528, u'title': u'links between creativity and emotional precarity', u'comment_id': 12784, u'content': u'Hi @Noemi, @Pauline, @Alex_Levene,
\n\nI found this article interesting:
\n\n\n\n\nAlan.
', u'post_id': 680, u'date': u'2017-01-12 18:16:44'}, {u'user_id': 3, u'title': u'Studies showing link between creativity and emotional precarity', u'comment_id': 12308, u'content': u'@Pauline @Alex_Levene let me know if you came across scientific studies establishing that link? I couldnt find any..
', u'post_id': 680, u'date': u'2016-06-23 08:33:11'}, {u'user_id': 3253, u'title': u'Hi Alex,\n\nthank you for saying thank you! ', u'comment_id': 11235, u'content': u'Hi Alex,
\n\nthank you for saying thank you! take all the time you need\xa0
Hi Pauline,
\n\nThis definitely resonates with me. I realy want to share my thoughts on this with you, but i need some time to think about how best to structure them.
\n\nI thought i'd say thank you for sharing first and then respond in a day or 2.
\n\nAlex
", u'post_id': 680, u'date': u'2016-05-17 12:56:48'}, {u'user_id': 3639, u'title': u'Definitely looking forward to connecting with Milan', u'comment_id': 20638, u'content': u'Dear Neomi and Milan,
\n\nYou guys are great and wonderfully made to create more sustainable impacts.
\n\nI respect you guys very much for your work and efforts. @ Milan, is there a possibility of us to connect? .I will love to hear from you soon if it is possible
', u'post_id': 670, u'date': u'2017-05-24 22:31:46'}, {u'user_id': 3, u'title': u'Make sure to use the @ pinging feature to reach Milan', u'comment_id': 17524, u'content': u'@Gentlewest you can increase the chances of\xa0Milan seeing and reacting to your comment, even\xa0many months after he posted, if you ping him. It works like facebook mentions - hit @ + username + blankspace. Like this @Milan_Siegers !
', u'post_id': 670, u'date': u'2017-05-24 20:29:26'}, {u'user_id': 3639, u'title': u'Behavior sciences is an interesting way of knowing people more', u'comment_id': 15150, u'content': u'Hello \xa0Milan,\xa0
\n\nIt is very interesting to get to know and understand people, especially trying to know their interests, passions and habits. Body language is a key to getting to know and understanding people well.From the way they greet, sit eat and talk.Some people are introverts , while others are extroverts. some are timid and some are loud and very bold. But ig you find like -minded passion driven young people, lets say not for profit making team members, they will definitely share same goals which might be for collective good of their community. I will recommend, you read more on social phsychology and body language.
', u'post_id': 670, u'date': u'2017-05-24 00:51:02'}, {u'user_id': 3, u'title': u"What's your design process?", u'comment_id': 7822, u'content': u'@Milan_Siegers thanks for keeping us updated. Curious, how do you go about finding answers? Do you go into academic literature or more practical surveying, or..? \xa0\xa0
\n\nA friend of mine, expat living in Cluj, has\xa0similar questions to yours and he\'s starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\xa0events branded as such -\xa0"you should spend time with strangers, it\'s healthy and fun".
\n\nIt\'s nice because it starts with a personal burning point and doesn\'t pretent it will find answers. Needing to find\xa0answers can be scary sometimes
I am out of words to explain how amazing the idea is. Such creativeness! Each of the artwork is unique in their own way. Carrying hidden meanings and emotion. Treat to the eyes. Glad to know you came up with the idea. Wishing you good luck.
', u'post_id': 838, u'date': u'2017-05-24 10:47:58'}, {u'user_id': 3, u'title': u'Freelancing in healthcare', u'comment_id': 20593, u'content': u'I had to re-read the post because I didnt understand at first whether this new super original\xa0type of health workers would train to become\xa0personnel, or it would be a training that is more alternative medical\xa0practice.
\n\nI\'m curious how freelancing works and if it is easy to become a temporary caregiver \xa0in a hospital, clinic, or other medical facility with this certification? @jesslockhart \xa0I think @jahn here was just reporting on the story, but maybe he knows the team personally to send your offer to them? That\'s very kind of you to come up with a design idea!\xa0
', u'post_id': 764, u'date': u'2017-05-24 15:04:32'}, {u'user_id': 3649, u'title': u'Brilliant!', u'comment_id': 14838, u'content': u"I love this. Shifting the viewpoint to highlight the beauty and variety of people's different abilities. It really does seem like a win-win idea. Your photo here looks so modern and stylish, but when I go to your website it falls a little bit flat in interesting content. The concept though is so beautiful.
\n\nI am a graphic designer, I can imagine a really beautiful brand overhaul to reflect this innovative project and an open source toolkit made for people/social entrepreneurs/investors\xa0who would like to implement discovering hands.
", u'post_id': 764, u'date': u'2017-05-23 09:06:56'}, {u'user_id': 3446, u'title': u'Undisclosed content ', u'comment_id': 9544, u'content': u'Undisclosed content', u'post_id': 764, u'date': u'2016-09-29 08:11:15'}, {u'user_id': 3664, u'title': u'Hello dear, I am from BANGLADESH too. Glad ', u'comment_id': 8421, u'content': u'Hello dear, I am from BANGLADESH too. Glad to know there are such nice thoughts about other people in your plans. It is high time we take an action about these because otherwise who will? All the best with your proposal. I have a project too, visit maybe? :
\n\nhttps://edgeryders.eu/en/one-simple-solution-for-global-warming-to-save-my-country
', u'post_id': 840, u'date': u'2017-05-24 10:45:59'}, {u'user_id': 4, u'title': u'You know who does this? Las Indias! ', u'comment_id': 17376, u'content': u'Ok, not quite the same. But here\'s the story: @lasindias also started a beer brewing club, making beer in the closet of their office in Madrid. The idea was to have a fun, sociality-inducing\xa0project as a way for people to feel the waters of social entrepreneurship. The members pitched in to buy the basic equipment: Las Indias HQ provided a place to run the brewing itself, and some of the Indianos are members. When the club meets, it meets at HQ. This is fun\xa0and\xa0it creates new relationship for the Las Indias cooperative. Plus, it could actually take off as a social enterprise! I guess you guys should talk to each other. I see potential for a valuable exchange: maybe someone in\xa0Madrid crew could think about developing the sociality angle (but: are there many men drinking alone in pubs in Madrid? Maybe not). And you,\xa0@jesslockhart , could learn how they were able to get going with no funding at all, and to achieve a small, easy win just by making it fun.\xa0
', u'post_id': 841, u'date': u'2017-05-23 18:44:25'}, {u'user_id': 3649, u'title': u'Thanks John', u'comment_id': 14829, u'content': u"Yes this project was started in 2012, but it is no longer running. It was a group project and some of us didn't have the time to really make it happen. But all the research is there so I would love the opportunity with the help of Edgeryders to get this off the ground.
", u'post_id': 841, u'date': u'2017-05-23 08:52:46'}, {u'user_id': 2915, u'title': u'How is it going so far?', u'comment_id': 10198, u'content': u"It's a grand idea and project. \xa0Your writeup says it started in 2012. \xa0How has it been going since then? \xa0Has it got those men to talking with each other more? \xa0I am sure it does, even if it is about the beermaking. \xa0That by itself would show it as a success since those guys aren't so alone anymore..
", u'post_id': 841, u'date': u'2017-05-16 16:47:14'}, {u'user_id': 3279, u'title': u'Worth a share', u'comment_id': 15020, u'content': u'@Noemi Yes, send the invitation, appreciate it. \xa0As far as this initiative, I read an article from an Environmental Engineer that was in collaboration with the University of Venda- I felt it was a fantastic initiative considering that water-related\xa0diseases kill thousands every year. \xa0Just thought it was worth sharing.
\n\nHowever, I did read that the initiative developed substantially in the past few years. I read that they opened up two facilities in South Africa. \xa0This is as of 2016, the facility produces clay water pots infused with silver particles to disinfect the water \u2013 and provides employment for the locals\xa0and is an excellent small business model for community entrepreneurs. \xa0
', u'post_id': 710, u'date': u'2017-05-23 15:37:58'}, {u'user_id': 3, u'title': u'How far did it get?', u'comment_id': 6621, u'content': u'@Maria hi! I see that this has been first developed by the team some years ago\xa0- the video is from 2013. Do you have any idea what happened since, if their tech evolved or was brought to the market?
\n\nA more important question for you: do you personally have contact with any of the projects or people you introduced in opencare so we can send them in invite to the Open Village Festival in October? I can send you a model\xa0invitation.\xa0Let me know, it would be useful.
', u'post_id': 710, u'date': u'2017-05-19 11:57:15'}, {u'user_id': 8, u'title': u'Summarising conversations in different threads...', u'comment_id': 23839, u'content': u'The link between openvillage, edgeryders and the festival has not been articulated clearly as @albertorey and @Scigrades and others in the community have pointed out.
\n\n\xa0It\'s something we are struggling with- Pieter has kindly offered to help do a simple visualisation once we have done a first writeup.\xa0Openvillage, and edgeryders in general, is a response to systemic problems. People come at them from different angles, this is my own whereas Alberto Cottica\'s is here\xa0and if you trawl through the edgeryders\xa0conversations throughout the years there are hundreds of conversations, each containing a piece of the puzzle. Over the next couple of days and weeks we will be hammering away at it with anyone and everyone who wishes to get involved. @Matthias is already here in Brussels, we\'re meeting @Mariekebelle this evening to drink and chat at a winebar near here (Rubik) \xa0@ewoudvenema is dropping by tomorrow, and it\'s one of the things we will be working on with @Matteo_Uguzzoni in the Power pitch workshop on Friday and Saturday.
\n\nAs far as what is already here:
\n\nWe have a number of spaces on the platform. They\'re currently not easily accessible, but will be changing this so that visitors to edgeryders.eu can get to them directly from the top level links in the hamburger menu- they will replace several of the ones which are currently there. We are also looking updating their contents to make clear connection with OpenVillage, and then adding links to them from the openvillage menu:
\n\n... What do you think?
', u'post_id': 6340, u'date': u'2017-05-23 14:49:23'}, {u'user_id': 8, u'title': u'Hi guys!', u'comment_id': 20210, u'content': u'It was really nice meeting you yesterday Pieter, we\'re working on that writeup of the bigger vision behind open village as planned.\xa0
\n\nHi Alberto
Yesterday we had a long call to discuss what is needed, and structure it so it is easy and\xa0to work together as a distributed crew spread all over the place. Here\'s what we came up with, what do you think?
', u'post_id': 6340, u'date': u'2017-05-23 08:32:14'}, {u'user_id': 3422, u'title': u'very interesting', u'comment_id': 14760, u'content': u'Hi Pieter,
\n\nThat sounds interesting! I would like to see some of your work.
\n\nYou might be interested in our project and publication about health concerns in Kathmandu....http://www.bagmatiriverartproject.com/project-publication-2/ .
\n\nI hope to meet you in Brussels.
\n\nKind regards,
\n\nAlberto
', u'post_id': 6340, u'date': u'2017-05-22 16:20:50'}, {u'user_id': 3584, u'title': u'Information Designer form Ghent', u'comment_id': 6603, u'content': u'Hi
\n\nI\u2019m Pieter, an information designer living and working in Ghent. I\u2019m a biologist by degree but I have a keen interest in turning complex information into clear and appealing graphics. I mainly design infographics and animations for scientists but I\u2019m open for any kind of graphic work. I\u2019m especially interested in the relation between science and design and how the latter can be used to attract a bigger audience to scientific research.\xa0
\n\nFor the open village festival I can design:
\n\ninfographics
\n\nflyers, posters,..
\n\nsocial media graphics
\n\na motion graphic (animated video) to advertise the festival
\n\nand so much more\u2026
\n\nLet me know what you need, I\u2019ll be happy to help you out!
\n\nPieter
', u'post_id': 6340, u'date': u'2017-05-19 11:07:39'}, {u'user_id': 3, u'title': u'Will be sharing your story ', u'comment_id': 17300, u'content': u'I am definitely up for sharing your story here,\xa0and then others\xa0can get in touch directly with you.. \xa0@Owen who is manning Edgeryders media accounts picks the stories on edgeryders which resonate with a topic we\'re exploring collectively. One of them is community care and how we look after each other in different setups, fields of work etc. For example about\xa0university - one thing that came up is learning to deal with pressure. This story about an online university and peer driven mental support is a good starting point, and it\'s told by a programme coordinator there.\xa0When you get in touch with others, chances are others will get (back) in touch with you..
\n\nIf you click on the link to the Festival it\xa0says 19-21 October, Brussels.\xa0also there:\xa0instructions for registering\xa0\xa0
Hi @tiamoreen and welcome to Edgeryders! I recognize the narrative because I myself have been through a process where I\'m ending up working on stuff that wasn\'t in the list of my academic edu programme outcomes. I posted my story a while back, here.
\n\nHow can people in Edgeryders can support your work? And in turn, what are you interested to discover..? We have an annual gathering which this year takes place in Brussels, see if it\'s of interest maybe? It\'s called\xa0#OpenVillage Festival.
', u'post_id': 847, u'date': u'2017-05-22 15:58:07'}, {u'user_id': 3599, u'title': u'Different profiles', u'comment_id': 19962, u'content': u'For Amal I am sure I will find the way once she is here in Belgium. I am less worried about her. because she will already be in save hands and she can apply as from Belgium
\n\nEmad is a more complicated situation because his PHD and student visa will come to an end and so his employer needs to apply for his visa. \xa0I guess he just needs an opportunity to stay in Europe and as I am not familiar with the academic world I am still lost in how to resolve this issue.
', u'post_id': 831, u'date': u'2017-05-20 15:09:40'}, {u'user_id': 3, u'title': u'The skills asymmetry..', u'comment_id': 18157, u'content': u'We were just talking about this earlier today with @Alex_Levene thinking of how policies for "integration" aka supporting people to rebuild their lives are not immediately oriented towards picking up people\'s aspirations and skills as they are, building on previous background and training.
\n\nWhere do these two individuals have to start\xa0their\xa0search for having the best chance\xa0of\xa0finding any job or position\xa0within\xa0the academic world?
\n\nI know some universities like CEU in Budapest opened itself to allow any classes to be audited by displaced people, but that\'s a small step. Probably meaningful still. Maybe look\xa0for some similar\xa0\xa0offers, if Emad and Amal are already covered by the Belgian state.
', u'post_id': 831, u'date': u'2017-05-19 16:00:23'}, {u'user_id': 3599, u'title': u'clear information (I hope;-))', u'comment_id': 16990, u'content': u'Hello!
\n\nThank you very much for giving me some of your time and maybe later some of your knowledge.
\n\nOK, here we go;
\n\n1) Question 1\xa0(Emad): How to\xa0enroll\xa0in any position within the academic world (or other) to be able to stay in a safe society like\xa0ours\xa0until\xa0they (him and his family) can return back home.\xa0Being\xa0Iraqi and at the end of a PHD in medical science and student visa in England. He is also looking to support his family\xa0financially.
\n\n2) Question 2 (Amal): How to find any position within\xa0the academic world, for somebody, on the way to Belgium, on a "family reunion visa", to be able to spend, the years waiting for the war to end, sensibly, by investing in her knowledge and-or career. As she will be supported by the Belgian state financially, money is a little\xa0less of an issue for her.
\n\nAs they are not in a position of demanding things they would\xa0of course greatly\xa0accept any solution or\xa0proposition\xa0
I guess what I am looking for most is;\xa0
\n\n\xa0* What kind\xa0of\xa0opportunities\xa0exist\xa0being\xa0in their specific situation?
\n\nI hope this makes things more clear. If not, shoot
\n\nI have asked both to give me more specifics on\xa0their careers.
\n\nCan\'t wait for your return.
\n\nMaria
', u'post_id': 831, u'date': u'2017-05-19 15:48:35'}, {u'user_id': 854, u'title': u'I may need more background', u'comment_id': 14667, u'content': u'\n\nI may need a bit more information before even trying to share any suggestion...
\n\nFirst thing, I would like to ask you to confirm my understanding.\xa0There are two separate issues that would need to be faced:
\n\n1) how to enroll in a doctorate while being classified a refugee [this one should be reasonable]
\n\n2) how to enroll in a doctorate as an already senior professional
\n\nThe latter\xa0is a bit complicated. In my limited experience, most EU doctoral programs are biased towards young, highly competitive candidates. Usually, more senior individuals access doctoral tracks by tertiary funding (e.g. the company hiring them covers the full university costs, and maintains them on payrol).
\n\nCan you share with us how the idea of a PhD was selected, among other alternatives? Is it for the student status/visa? Or for the need to receive economic support? If their titles/certificates are at hand (which I presume, since they do not want to enrol in a bachelor, but in a doctorate), why not seeking a professional position (lecturer, lab technician, ...)? If they have tried and failed, could you share a bit more about this, to figure out what is the situation...
\n\nIn general, no one size fits all in academic careers... It\'s my humble opinion, but for the double issue you are bringing to our attention,\xa0I\xa0am somewhat skeptical that anyone will be able to say "get in touch with X" or "look up on Y"... each solution will be custom tailored on the history and professional profile of the person. I hope to be able to help you doing the latter.
Wow, this is heartfelt, seeing people like you\xa0do so much for others.\xa0
\n\nWho can help with even a contact in Belgium that could provide more info? In or outside universities, people must know what works or what doesnt.
\n\n@Rozina , @Dougald , @Lakomaa , @Federico_Monaco .
\n\nAlso, maybe the OpenInsulin folks around here can help? @ritavht , @Scigrades , @arnepauwels .
', u'post_id': 831, u'date': u'2017-05-09 12:58:00'}, {u'user_id': 3, u'title': u'Are makers in residence already recruited?', u'comment_id': 6864, u'content': u'@Federico_Monaco thanks for documenting the work. So is\xa0the search for residents over? Who\'s on board? Do you think it would be good to invite them to exhibit their product and reflect on the process,\xa0at the OpenVillage?\xa0
\n\nservice and hardware may reach a ratio definitely in favour of the services (service 90%; hardware 10%).\u200b - are you refering to projects we are discovering in opencare, from all over the world? or mostly a WeMake challenge? Either way, that could be a result itself, it tells us that convening people\xa0to tell others and\xa0learn about community care tends to be more effective when there is social dynamics or\xa0relationship building involved.. just a hypothesis, of course many factors are involved and some other relevant conclusion could be due.\xa0
', u'post_id': 574, u'date': u'2017-05-19 22:28:01'}, {u'user_id': 200, u'title': u'Where is non-violent resistance appropriate?', u'comment_id': 19608, u'content': u"It is a tricky question. I've seen it written that Gandhi, King and others relied partly on the background assumptions of the culture they lived in, for their non-violent approach to succeed. I would perhaps contrast that with the idea of non-violent protest under the Nazi regime 1940-45. A recipe for instant disappearance and death, along with anyone else who showed any signs of supporting the non-violent protest.
\n\nNon-violence as a way of life, however, I do believe is nearly always good. It's just that open protest might not be the way to go. Instead, it might be being kind to one's oppressors. Or treating them with empathy. Nonviolent Communication is a good set of principles in many settings. But people have to be human. What good is non-violence in face of a pack of hungry wolves or hyenas? And sometimes, people lose their humanity, behaving like animals. It can be very hard to call back people's humanity, but perhaps always worth the effort?
", u'post_id': 813, u'date': u'2017-05-19 19:22:15'}, {u'user_id': 3, u'title': u'Boiling points', u'comment_id': 15843, u'content': u'Hi @Michel.
\n\nThat feeling of powerlessness in the face of politics is present in many people\'s minds, no matter where they are in the world or the\xa0regime governing them.. Unfortunately it\'s hard to say what needs to happen to undo that. A lot of the times it is cumulative effects, at others it is a sudden outbreak.\xa0
\n\nI hear you. Myself, I was so suprised to see a quarter million people taking the streets in my country these weeks for something very concrete - the government passing an emergency ordinance in the middle of the night, "like thieves", people would say. And right they are. In a democracy, this is non-violent protesting.. and it kept growing gradually because people would suddenly see that joining forces can actually overturn things. And it did, but because a large enough number made that mental click.
\n\nSo I suspect the best advice is to hang in there, and keep building.
\n\nAlso, the world is watching now, more than ever. Solidarity has ever new ways of showing its face \xa0
@Alberto you right, this is not on the right place. I recently meet some problems with my connection, \xa0my phone touchscreen was wet when I was publishing this and the phone was like infected and it was like randomly selected to this challenge. It was difficult for me to connect until now.\xa0
', u'post_id': 813, u'date': u'2017-02-23 08:06:16'}, {u'user_id': 4, u'title': u'Except...', u'comment_id': 8777, u'content': u'@Michel , are you sure this is in the right place? You assigned it to a challenge called Onboarding (https://edgeryders.eu/en/onboarding), which appears to be about something unrelated.\xa0
\n\nUsed to be these kinds of posts (not related to a project, just wishing to express an opinion)\xa0would go in the Agora. @Nadia can you help us figure out how to do this in the new data model?\xa0
', u'post_id': 813, u'date': u'2017-02-16 13:03:42'}, {u'user_id': 2915, u'title': u'It is for me for sure', u'comment_id': 23432, u'content': u"I have had a lot of jobs and work situations over the years. \xa0And I have friendships that continue and are active from just about all of them. \xa0What I can say about my own experience is that the ones that lasted had a social component outside of work. \xa0The ones that stayed only inside the workplace were certainly friendly for the most part, and I am sure that any one of them could resume in a friendly way should the situation arise. But the ones that really lasted - and which provide for me the best opportunities for a high quality referral or a collaboration (as well as an assurance of a good time if it's just social) - are the ones that had a personal/professional overlap. \xa0\xa0
\n\nFor an unusual guy like me who has no credentials bestowed by any institution, this means everything. \xa0My survival has depended on it. \xa0One report from the\xa0edge, anyway...
", u'post_id': 6323, u'date': u'2017-05-19 17:48:16'}, {u'user_id': 3, u'title': u'LOTE', u'comment_id': 19619, u'content': u'Yes @johncoate it\'s not the first time I heard people say this:
\n\nMy experience at the LOTE that I attended last year was that the people there had so many natural affinities that it seemerd like anyone could talk with anyone else and develop some sort of bond that could lead somewhere new.
\n\n@Bridget_McKenzie after LOTE1 said that Edgeryders is like "a slow sustained speed dating session online" (on her blog). So\xa0I guess that kind of meaningful relations are what we\'re going for as a basis for building things.
', u'post_id': 6323, u'date': u'2017-05-19 08:24:56'}, {u'user_id': 3, u'title': u'Yes to more video formats', u'comment_id': 18152, u'content': u'Similar to "Talk to me about.." series which we shot when people were in the same place, last year ahead of LOTE we asked participants to tell others about their failures, which was the topic for the event. Here\'s a long thread with responses\xa0that came out.
\n\nThe next step I think we missed: how to make all of these personal intros more available to people new to edgeryders or the event...\xa0
\n\nOf course, @Shajara you leading this means you make the decisions, I\'m game.
', u'post_id': 6323, u'date': u'2017-05-19 14:08:26'}, {u'user_id': 8, u'title': u'Video hangouts and welcoming new arrivals', u'comment_id': 16960, u'content': u'For in person\xa0conversations, there are the weekly online video chats. @trythis has been in many of the previous ones (do you still have\xa0some of that audio documentation?). When we did them in the past they were often meandering and could run on for ages, people dropping in and out. Kind of like a cafe.\xa0It can be really nice and a good way to get to know one another.
\n\nSomething else we have tried is Video
\n\nThere are also older, pre-edgeryders experiments like this one
\n\nMaybe we can get a tradition going where people make videos and then post\xa0them in the\xa0arrivals group?\xa0
\n\nWe already have a lot of videos from members lying around, so we could get in touch with them and invite them to get it started... what do you think @Shajara @Noemi \xa0@johncoate
', u'post_id': 6323, u'date': u'2017-05-19 09:30:00'}, {u'user_id': 2915, u'title': u"It's a good point", u'comment_id': 16211, u'content': u'Relationship building isn\'t all about\xa0projects and work, even when it is of such importance. \xa0Relationships are built on trust, and in turn so is the process of networking among individuals. \xa0But there isn\'t any one way that trust gets established. \xa0We humans are deep and complex and there isn\'t any one set way that people form bonds - bonds that last anyway.
\n\nSometimes a simple question like "what do you do for fun?" leads to something meaningful in life and in work. \xa0My experience at the LOTE that I attended last year was that the people there had so many natural affinities that it seemerd like anyone could talk with anyone else and develop some sort of bond that could lead somewhere new. \xa0But there is a lot to be said for "fanning the flames" to increase the likelihood of it happening.
\n\nIt has occurred to me at times that this site, very project oriented, would benefit from areas where such mutual discoveries could more easily happen. \xa0It isn\'t small talk if it leads someplace bigger.
', u'post_id': 6323, u'date': u'2017-05-15 14:42:07'}, {u'user_id': 3, u'title': u'6 PM CET', u'comment_id': 13006, u'content': u'Always this time. (I was on the road this last wednesday so I may have missed it indeed, apologies)
', u'post_id': 6323, u'date': u'2017-05-19 08:25:46'}, {u'user_id': 3374, u'title': u'Sound good', u'comment_id': 12732, u'content': u'@Noemi, sounds good. One question though, what time is the community call? I tried to attend last week but didn\'t find anyone, so I think I may have the wrong time.
', u'post_id': 6323, u'date': u'2017-05-19 08:04:28'}, {u'user_id': 3, u'title': u'Yep, proceed here.', u'comment_id': 12729, u'content': u'Yes @Shajara I think it would be best to document the work here. There\'s of course flexibility -\xa0if there is a call for participation then better put it in a new post also in this Coordination group so we can circulate it.
\n\nShould we catch up during next week\'s community call on Wednesday? (the hangout link is as usual this one). Looking forward..!\xa0
', u'post_id': 6323, u'date': u'2017-05-19 06:34:01'}, {u'user_id': 3374, u'title': u'Great Explanation', u'comment_id': 12143, u'content': u'@Noemi, Sorry for the slow response, I\'ve been traveling with limited internet access. Thank you so much for sharing all this! It is the first I\'ve heard about the Living On The Edge events, so just to clarify do these events only happen\xa0during the annual conference, or are they ongoing events\xa0with a few co-occurring with the conference, or are these events completely separate from the conference?\xa0
\n\nAlso, I\'d love to make an Edgeryders Match happen before the conference! I\'ll contact my friend who\xa0ran it\xa0in another community and ask\xa0her for an outline. Is the best way to proceed just to continue to post in this thread?
', u'post_id': 6323, u'date': u'2017-05-18 23:40:17'}, {u'user_id': 3, u'title': u'Whoa, great thinking', u'comment_id': 9414, u'content': u'Hi @Shajara this is really helpful. So, the gist is that we do have these in the tradition of Living On The Edge (LOTE Edgeryders events, five so far) - we had on offer early morning yoga sessions in caves, personalised city tours led by Brussels locals,\xa0playing frisbee in a\xa0city centre, but most importantly: food was most of the time an element for communal get togethers -\xa0200 of us made\xa0pasta in a southern Italian city, or dozens cooking from waste in a Disco Soupe format, or just hanging around the kitchen A\xa0LOT.. see some pics below
I especially like your idea of Edgeryders match ! Having participants meet and socialize ahead is part of what we found works with community events, and there is much room to do it even better than interacting solely around projects. I am willing to support such an activity if you are game!
\n\n\n\n
Welcome on board @ewoudvenema and thanks to the lovely Natalia for introducing you to edgeryders.
\n\nOurselves are in the very process of setting up a community space in Brussels (The Reef mentioned by Nat), starting small in our first year, but already looking for a bigger space in 2018. The most concrete and useful info I found on your website is this:\xa0An 11.000 sqm house gives space to everyone who has an in^terest in contributing time, skills and resources into a manifestation of unconditional sharing and co-creation. How did you get hold of the space and for how long?\xa0While The Reef is similar in the idea of sharing physical space to support each other, the model for making it sustainable and not conditional on core team members or Edgeryders as an initial (small) investor is a challenge.. which is why we want to run a session on co-designing it during our Festival in the fall. Of course, this is designing by doing, as we cant afford a year of just planning.\xa0Would you be interested in joining the festival?\xa0\xa0
\n\nSome other communtity building projects by fellow edgeryders which you could find interesting:
\n\nHello Ewoud! Great to read you on our platform - I wanted to introduce you to @Nadia and @Noemi, who live in Brussels and are working on the Reef. There\'s a lot of synergy between your and our work on edgeryders, and I am really looking forward to meeting you in October at the meeting. You will also enjoy meeting @johncoate who\'s been building communities in US for quite a while now. Welcome
The team at WeMake probably know this, but what informs the amount of work of a makerspace/ fab lab puts into projects of care (underwritten by values like affordability, accessibility, inclusivity of whatever products are #D printed) versus the more commercially driven products?
\n\nIs there an agenda of sorts? For example, the FabCity network apparently are going for building urban ecosystems: "obliging cities to produce 50% of everything that is consumed in a city to be local by 2054 using new production methods" (from Yannick\'s post on medium.com)\xa0At that level, care seems to be very abstractivized.. \xa0whereas a local fab lab agenda could be of much more interest to opencare.
', u'post_id': 839, u'date': u'2017-05-19 14:40:55'}, {u'user_id': 3638, u'title': u'Undisclosed content ', u'comment_id': 22275, u'content': u'Undisclosed content', u'post_id': 6321, u'date': u'2017-05-15 15:11:48'}, {u'user_id': 2915, u'title': u'Magical Art of Silence', u'comment_id': 21180, u'content': u'Great name, and some very nice art. \xa0In looking at your page in FB I also saw a link to the "Youthopia" \xa0https://www.youthopiabangla.org/index.php# which presents a lot of promising opprtunities as well as a number of meetups and get-togethers. \xa0It\'s great to see this going on. \xa0I agree that it is well worth the time to investigate and understand all of it better.
', u'post_id': 6321, u'date': u'2017-05-15 14:57:00'}, {u'user_id': 137, u'title': u'@Noemi, no, I found Natasha Welcome, @Natasha_Kabir, ', u'comment_id': 16133, u'content': u'@Noemi, no, I found Natasha Welcome, @Natasha_Kabir, very happy to see you on board.\xa0
Very interesting organization reaching a diverse community...good work.
', u'post_id': 6321, u'date': u'2017-05-16 13:00:24'}, {u'user_id': 3638, u'title': u'Undisclosed content ', u'comment_id': 13183, u'content': u'Undisclosed content', u'post_id': 6321, u'date': u'2017-05-18 06:58:24'}, {u'user_id': 3, u'title': u'Small clarification', u'comment_id': 13122, u'content': u'I forgot to ask you @Natasha_Kabir : is your post intended as a\xa0proposal for a session at our event in October, the OpenVillage Festival?\xa0Trying to keep track of all the incoming ideas over here..
', u'post_id': 6321, u'date': u'2017-05-18 06:53:27'}, {u'user_id': 3638, u'title': u'Undisclosed content ', u'comment_id': 12989, u'content': u'Undisclosed content', u'post_id': 6321, u'date': u'2017-05-18 00:24:19'}, {u'user_id': 3, u'title': u'Hadnt seen that page', u'comment_id': 12685, u'content': u'I agree with @Johncoate below, great name.
\n\nI look forward to reading more, hopefully in the meantime you can also socialize around here. I recommended reading about the project in Milano, but Edgeryders has a pretty diverse network, so let me know if you want to especially connect with some projects or areas.\xa0
\n\nWaving from Belgium,
', u'post_id': 6321, u'date': u'2017-05-17 05:54:15'}, {u'user_id': 3638, u'title': u'Undisclosed content ', u'comment_id': 11777, u'content': u'Undisclosed content', u'post_id': 6321, u'date': u'2017-05-15 13:40:53'}, {u'user_id': 3, u'title': u'So many references', u'comment_id': 9491, u'content': u'Hi @Natasha_Kabir and welcome to edgeryders! I suppose @albertorey introduced you to our community? I see a connection there, geographical and also in using art for awareness raising and advocacy.
\n\nI skimmed through two of your references, but they are too many and too long to read in one go! The video is especially inspiring..
\n\nIn the opencare research of which OpenVillage Festival is part of, we have been engaging with community projects to understand how the very groups projects are intended to serve are participating actively in shaping them. Opencare means, to some extent, very participatory community approaches to solving a problem. I\'m curious if and how the artists you work with are involved in the BRIDGE Foundation, or taking the lead somehow..? To give you an example, in the WeHandU project in Milano the disabled are invited to\xa0jointly design customized prostheses better than those on the market,\xa0and a project team is there to support\xa0putting them in practice, more than offering a readymade solution. I think the team - in its early days would very much appreciate your feedback as a comment to their post, thanks!
', u'post_id': 6321, u'date': u'2017-05-15 06:27:29'}, {u'user_id': 3631, u'title': u'Undisclosed content ', u'comment_id': 11759, u'content': u'Undisclosed content', u'post_id': 836, u'date': u'2017-05-15 10:45:20'}, {u'user_id': 3, u'title': u'Link to video?', u'comment_id': 9432, u'content': u'Hello team @Group_3 and nice work. Over here in the\xa0edgeryders community we appreciate it when people document their work as this gives the rest of us inspiration and a window into how change happens
I am curious if you posted the video and have a link to it? Let me know if we can help\xa0in any way.
', u'post_id': 836, u'date': u'2017-05-14 17:36:14'}, {u'user_id': 4, u'title': u'Good work! ', u'comment_id': 29087, u'content': u'Wow, that seems like a lot of work! Congratulations. I find quite hard to read the longhand writing on the post-its in your photos, but I watched the videos and everything became clearer. Are you moving forward to realise it? When?
\n\nSomething in your project reminds me of a different project we are working on at Edgeryders. It\'s called Future Makers, and it\'s about DIY urbanism. Not so much city\xa0planning\xa0as city\xa0making, directly. It happens in three cities: Yerevan, Armenia; Rustavi, Georgia; and Luxor, Egypt, under the aegis of the United Nations Development Programme. Working with UNDP, we have noticed that there are groups of people who are trying to "edit"\xa0the city as if it were a wiki, without necessarily going through all the mandated procedure. Some of the "edits" are good, great in fact: look at this Cairo neighborhood were people got out with\xa0bulldozers\xa0and build four new ramps to access the ring road!\xa0
\n\nIn Future Makers. the city authorities and the\xa0local "city hackers" agree on a street, or a square, or a park, that is marked as "editable". Within the limits set, everything is allowed, as long as the people build it themselves. We will then see what happens.\xa0
\n\nFuture Makers has a workspace here on this platform, but they have decided to keep it private, so, I can\'t share what they do with you. But if you are interested you can ask for membership of the workspace \u2013 just send a message to Noemi from here: https://edgeryders.eu/en/users/noemi , then click on the "Contact" tab.\xa0
', u'post_id': 575, u'date': u'2017-05-14 15:07:16'}, {u'user_id': 3630, u'title': u'Undisclosed content ', u'comment_id': 27827, u'content': u'Undisclosed content', u'post_id': 575, u'date': u'2017-05-12 16:35:44'}, {u'user_id': 3630, u'title': u'Undisclosed content ', u'comment_id': 26064, u'content': u'Undisclosed content', u'post_id': 575, u'date': u'2017-05-12 16:29:04'}, {u'user_id': 3630, u'title': u'Undisclosed content ', u'comment_id': 24181, u'content': u'Undisclosed content', u'post_id': 575, u'date': u'2017-05-12 16:22:36'}, {u'user_id': 3630, u'title': u'Undisclosed content ', u'comment_id': 20341, u'content': u'Undisclosed content', u'post_id': 575, u'date': u'2017-05-12 16:16:09'}, {u'user_id': 3630, u'title': u'Undisclosed content ', u'comment_id': 14908, u'content': u'Undisclosed content', u'post_id': 575, u'date': u'2017-05-10 08:51:13'}, {u'user_id': 3630, u'title': u'Undisclosed content ', u'comment_id': 7855, u'content': u'Undisclosed content', u'post_id': 575, u'date': u'2017-05-10 08:56:13'}, {u'user_id': 2915, u'title': u'Citizen Science', u'comment_id': 9204, u'content': u'Right on. \xa0Great report. \xa0
', u'post_id': 6320, u'date': u'2017-05-13 01:46:04'}, {u'user_id': 3638, u'title': u'Undisclosed content ', u'comment_id': 29066, u'content': u'Undisclosed content', u'post_id': 511, u'date': u'2017-05-13 00:00:14'}, {u'user_id': 116, u'title': u'i would like to give you a reference ', u'comment_id': 27798, u'content': u'i would like to give you a reference of soemthing big which lasted for many decades and had a solid scientific background and support. it is much differnet from your project but in some way it was aimed at showing and trating mind problematic people (sorry for my english) to a different open normal way:
\n\na big area (ex psichiatric hospital) transformed into a living community with srvices and cultural events partially manged by people which woudl ahve been reclused.
\n\nhttp://www.olinda.org/cittaolinda/paolo-pini
\n\ngoogle should help in putting into english
', u'post_id': 511, u'date': u'2016-09-16 11:20:27'}, {u'user_id': 3, u'title': u'Got advice for this interesting mental health initiative? ', u'comment_id': 26023, u'content': u'@Omri_Kaufmann @Pauline @wishcrys @Andra_Pop and come to think of it even @Andra.B might be\xa0into this.
Say hello to\xa0this wandering therapist who is doing traumatherapy on wheels and going on a tour in Europe just now!
', u'post_id': 511, u'date': u'2016-09-14 08:47:17'}, {u'user_id': 3397, u'title': u'Vernacular language, platforms, and context', u'comment_id': 24338, u'content': u'Moshimoshi folks,
\n\nI think the work you are doing is great. I am an anthropologist who studies young people\'s practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm).
\n\nIt strikes me that the language of "shit happens" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all.
\n\nIt would be great to see how your team will approach different internet/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!
', u'post_id': 511, u'date': u'2016-09-06 08:33:29'}, {u'user_id': 8, u'title': u'Video online. Maybe we should make a page with all the projects?', u'comment_id': 22431, u'content': u'Maybe it makes sense to embed the video in this post
\n\n\n\nwith a\xa0Support us on Startnext! button linking to the fundraising page?
', u'post_id': 511, u'date': u'2016-08-03 15:12:50'}, {u'user_id': 3, u'title': u'Just a quick ask: video?', u'comment_id': 21491, u'content': u'Hi again! If you guys have the crowdfunding video up online somewhere it would be great to share it!
', u'post_id': 511, u'date': u'2016-08-01 09:07:39'}, {u'user_id': 3339, u'title': u'I\u2019m sixteen and I find this concept relatable and useful...', u'comment_id': 14581, u'content': u'I really enjoyed reading this article and I find familiar to me some\xa0of your influences (the Tumblr users, I\u2019ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don\u2019t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this \u2013 like I am).
\n\nThanks for sharing this and good luck with it! What are the next "challanges" going to consist of? Let me know if you need a young girl\u2019s opinion. I\u2019m really interested into this subject and I would like to give some help.
I do not know much firsthand about depression and mental discomfort (lucky me). But I have heard that positive messages are not uplifting on depressed people, on the contrary. If you have doubts about when and how much to be humorous, you could look around for research about the matter. I am sure there must be loads, though I myself cannot think of anything...\xa0
', u'post_id': 511, u'date': u'2016-07-05 08:07:42'}, {u'user_id': 3253, u'title': u'Humor vs. Approachability', u'comment_id': 11930, u'content': u"Thank you! I think the main thing we are trying to do is make this topic more approachable. More\xa0than humor it's perhaps about\xa0the casual language and the interactive methods like the simulators and surveys. Of course it is still a serious topic and the options for professional help\xa0should be presented in a serious manner. We don't want to make fun of the shittiness itself, but rather criticize\xa0the social standards concerning emotional wellbeing,\xa0in a somewhat\xa0satirical / cynical way.\xa0As far as using irony or humor to embrace the shittiness, I think that's very personal. Those comics that we mentioned for example often deal with these issues in a funny way and receive many comments saying that it's helpful. But surely there is also people who deal with it differently.\xa0
", u'post_id': 511, u'date': u'2016-07-04 18:31:44'}, {u'user_id': 3, u'title': u'"comforting cynical tea bags" LOL', u'comment_id': 9367, u'content': u"You guys have a very interesting list of perks for those willing to experience distress, kudos.
\n\nSo you want to raise awareness about serious issues through\xa0humor, or a lighthearted\xa0approach. I'm guessing there is a difference to be made in approaching awareness this way versus advocating for mental\xa0support\xa0through humor. For the latter: does\xa0(self)\xa0irony\xa0help\xa0embrace\xa0the shitiness of one's situation? hm, not sure.
", u'post_id': 511, u'date': u'2016-07-01 09:40:50'}, {u'user_id': 3, u'title': u'Wow', u'comment_id': 11242, u'content': u'I know travel\xa0is problematic for non-Schengen\xa0because I grew up with it (I\'m Romanian). My life changed completely at 15 when I traveled abroad for the first time, and has shaped who I am today, and where I live (I recently moved to Brussels). @Jack_Dushica if you could use additional help or any sort of references, recommendations to access an exchange program, Edgeryders is surely happy to help. We are an international/ Europe based organisation, no employees and many collaborators for mutual support. For example if members want to write funding applications and could use to apply with Edegryders (in its name), the core team is happy to help set you up. Ourselves we also felt our rights were being flushed away in the aftermatch of Brexit so we just moved our company in\xa0Estonia to preserve the values and rights we care about. Alberto just blogged about it here.\xa0
\n\nThe project above is about having students in a neighborhood in Milano go outside their design bubble and talk to the people in the neighborhood. So not so much about international traveling, but about - like you say -\xa0learning and accessing new knowledge.
', u'post_id': 833, u'date': u'2017-05-11 07:58:25'}, {u'user_id': 3606, u'title': u'Greetings from Kosovo ', u'comment_id': 7661, u'content': u'I would like to make a comment to your idea and pssdgroup5\xa0I must say that it is a brilliant topic and also a\xa0very huge space to contribute and envelope students and helping them on their way forward.
\n\nI can value this very good, because my country Kosovo ( FYR Of Yugoslavien ) is the only state in the Europe Union which citizens are forbiden to travel abroad Kosovo,although we have family members and friends in every country in Europe we are not allowed to travel in Schengen Zone without a special permission which is permitted to only 10% of the popullation. The youth and the students are suffering from this, making them unable po expand their knowledge and reach higher level of education, we are censured to one of the human rights, free movement of the popullation.
\n\nThere are several student exchange programs with the United States and the EU which would be very helpfull to start sharing and collecting new connections and educations. I have needed such a exchanging programm as a student, eventhough i didn\'t make it to be a part of an exchange program as a participiant.
\n\nThumbs Up and wish you all the best...
', u'post_id': 833, u'date': u'2017-05-09 21:46:28'}, {u'user_id': 3628, u'title': u'Undisclosed content ', u'comment_id': 31152, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-10 23:11:15'}, {u'user_id': 3624, u'title': u'Undisclosed content ', u'comment_id': 30614, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-10 21:28:33'}, {u'user_id': 3629, u'title': u'Undisclosed content ', u'comment_id': 29967, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-10 17:29:21'}, {u'user_id': 3629, u'title': u'Undisclosed content ', u'comment_id': 29086, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-10 09:30:50'}, {u'user_id': 3624, u'title': u'Undisclosed content ', u'comment_id': 27829, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-10 08:20:01'}, {u'user_id': 3632, u'title': u'Group 6', u'comment_id': 26067, u'content': u'What are the need of students when they first come to Bovisa?
\n\nWith this question in mind, we set out to brainstorm on this topic, covering topics as dear as food, housing and facilities, moments of relax and moments of hard work.
\n\nWe then mapped out our\xa0needs in 3 categories: Practical, Personal and Social.
\n\nWe discovered that most solution share a practical component, that is indeed essential when trying to sort out how to move in a new, foreign environment.
\n\n\n\nAfter brainstorming in, on and for Bovisa, we agreed on some indisputable truths about it:
\n\nFACT 1: Bovisa is a meltin\u2019pot.
\n\nPeople from many nationalities live in this neighborhood and many exotic shops can be found walking in the streets. Here, people can find at a short distance Chinese takaways, Italian pizzerias, Japanese all-you-can-eats and Indian restaurants (just to name a few).
\n\nUnfortunately, the wide geographical network does not convert into effective connections.
\n\nThat\u2019s why we asked ourselves:
\n\nHow may we foster cultural exchange and engagement among different nationalities?
\n\nFACT 2: Bovisa is undefined.
\n\nIn the past, it was an industrial powerhouse. Today it\u2019s something different, difficult to define.
\n\nIt lacks the identity that other areas have successfully established,\xa0
\n\nwhich also reflects on the feelings that people share towards their place.
\n\nFor that reason, we believe that Bovisa needs to state new, authentic values\xa0
\n\nto make its way to the minds and hearts of people.
\n\nThat\u2019s why we asked ourselves:
\n\nHow may we shape a relevant and unifying image for this area?
\n\n\n\nDay 2
\n\nDEFINING AN IDENTITY THROUGH CO-DESIGN
\n\nMost social innovation projects start from the bottom-up, engaging communities by leveraging common interests. In the same way, we believe that designers should start at the ground level when dealing with the complexity of social organizations: before looking at needs and solutions, they should start from the definition of a system of shared values.
\n\nIn line with the participatory nature of the topic, we intend to create a platform that uses co-design to research, define and communicate a new authentic identity for the Bovisa area.
\n\n', u'post_id': 832, u'date': u'2017-05-10 07:57:06'}, {u'user_id': 3, u'title': u'Welcome to all!', u'comment_id': 23763, u'content': u'Dears, happy joining on edgeryders, I am Noemi, community manager and happy to assist if you need help navigating our web platform.
\n\nIn order to draw attention of someone to what you are writing make sure to use the pinging options (@ followed by username and a blank space), for example: welcome @Group_3 , @Workshop_Group4 \xa0, @Social_Open_Campus and so on.\xa0
\n\nIf everyone agrees that more interactions are needed with the local community, does this mean that you yourselves would be\xa0willing to spend your free time in other company than the usual? (maybe elderly, families, children). Think about it. After all, you are residents there too, so you are in the position of both designers and "partners" or "contributors" in the service you design. I am also wondering if students who live in Bovisa have identified different priorities than those who only study there?
', u'post_id': 832, u'date': u'2017-05-10 06:35:21'}, {u'user_id': 3626, u'title': u'Undisclosed content ', u'comment_id': 20209, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-10 06:12:23'}, {u'user_id': 3628, u'title': u'Undisclosed content ', u'comment_id': 14770, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-09 21:57:02'}, {u'user_id': 3627, u'title': u'Undisclosed content ', u'comment_id': 7571, u'content': u'Undisclosed content', u'post_id': 832, u'date': u'2017-05-09 17:38:00'}, {u'user_id': 3, u'title': u'Your personal experience?', u'comment_id': 7784, u'content': u'Welcome to edgeryders @7koalas , nice to meet you.
\n\nInteresting way of phrasing it, "social hiatus". I am wondering if you have your own memory of feeling strange or unease, or lonely in a situation. How long have you been living in the neighborhood?
\n\nFor me and my colleagues in Edgeryders, being new to a city like Brussels (we live here\xa0but we are all expatriates)\xa0definitely risked feeling loney or unfit. It made us reconsider our lifestyle habits and become more social in our own living environment, through trying\xa0co-housing. The reason it works is that we are both designers and subjects of the experiment, so we only designed what we are willing to do. Have a look at the story we posted\xa0and feel free to comment there or here..\xa0do you socialize or create bonds with people in Bovisa outside your student circle or friends? if yes, great. if no, what are the constraints at the personal level?
', u'post_id': 834, u'date': u'2017-05-10 06:46:35'}, {u'user_id': 3606, u'title': u'Impressive story and idea !!!', u'comment_id': 26041, u'content': u'Well as very first I would like to graduate @ChristineSa\xa0you for your movement and idea at first of all. I have followed also a little the financial crisis in Greece through the news and the one and only thing that came across my mind is, that there are political conspiracies and reflectation of the crisis and the main reason is an earlier debt to the WEF and the Central Bank System.\xa0
\n\nI would\'t like to be very specific and boring, and I think that the most of you understand how the global financial system works. With increased interest you will shut the other party down, whether is it on food, water, money, medicine and other life sustainable neccesarities.
\n\nAnd achieving to create an cooperation community is a very, very smart idea as long as it will be promoted and shared with the community you live in or are planning to support. I would have a special request, as soon as you are planning an idea which will save and help the humankind, please try to create a fair cycle of the equality.
\n\nI am also very updated with the cryptocurrencies and that has proven us that where is the will, there is a way which means that everything on what or which you work hard on for it will be perceived. \xa0(Thumbs Up )
\n\nWish you all the best and good luck on your journey...
', u'post_id': 741, u'date': u'2017-05-09 19:46:08'}, {u'user_id': 3404, u'title': u'Hey everyone, thanx for your comments!\n\nOur group is ', u'comment_id': 24572, u'content': u'Hey everyone, thanx for your comments!
\n\nOur group is based in Thessaloniki but it is connected with a global network of tools and projects with the vision to expand an alternative and fair economy through cooperation, or let\u2019s say to create sustainable economic solutions through cooperativism. In Greece there is already many cooperatives, especially created as a result of the economic crisis, either under a legal form or remaining informal, and we want to support their networking as well as to expand the network through creating new cooperative initiatives.
\n\nOne of the tools to connect those and at the same time to untie ourselves from the banking system is alternative currency networks and FairCoin is already doing this on a global level. However the currency is just a tool, what is most important is the vision and the values that incorporate the efforts. In Thessaloniki, we started quite recently but there is already some places that joined and we hope to see more of them joining very soon. In Greece there is more places in Athens and the island of Crete, where FairCoin is further connected to the local currency of Herakleion. @Noemi you can find a global directory with all the places using FairCoin here.
\n\n@WinniePoncelet this is certainly not an easy task, especially when the effort is being made on a global scale and you are trying to create change in a global scale. But we hope that cooperation can help with all the progress. The biggest challenge I see is trust and empowerment, people to trust each other and believe that collectively they can change things. So trust to each other and trust to collective power, rather than being disconnected and antagonistic. From so many sides we are being trained to not trust each other and our collective power, but I believe that culture is gradually changing and people are becoming more inclined to create communities and cooperate. Technology and to a certain extent the economic crisis have supported that.
\n\n@Simonedb I agree with you that it is extremely important to remain open to other ideas and projects, and this is why we were so happy to participate at the Edgeryders workshop in Thessaloniki where we met this amazing community of people! At the same time, it is also important to have clear values and objectives, so that people trust you. So openness, cooperation and values can go a long way and can bring very creative results, especially on a large or global scale.
\n\nI invite people interested in our efforts to visit FairCoop\u2019s website and if you wish to be more actively involved or have ideas to share, please leave a message or join our telegram groups which we use for networking and communication, by sending an e-mail to: coop@fair.coop!
\n\nPS: @Noemi, I don\u2019t think we have met before, do you mean the Festival of Solidarity and Cooperative Economy in Athens? I have been there, but since I live in Thessaloniki I am not part of the organizing team. However our group here is connected with the people in Athens and also people organizing the festival. There is another Christina among them so perhaps this is who you mean?
Hey, I wonder if we\xa0have met before here and there..? Were you at some point organising the Fest of Solidarity, circa two years ago? anyway..
\n\nIs your group or another in Greece already using Faircoin, and where? Is anybody estimating how much use is needed in order to see communities or projects up and running and producing results thanks to\xa0it?
\n\nFor detailed\xa0measurements\xa0feel free to point me to resources,\xa0I\'m sure the story is longer..
\n\nPS @Simonedb @woodbinehealth make sure you ping @ChristinSa or any edgeryders if you want to be sure they see your comment, notifications can get lost in the long stream.
', u'post_id': 741, u'date': u'2016-09-16 21:06:10'}, {u'user_id': 116, u'title': u'no enemies be fully inclusive', u'comment_id': 15909, u'content': u"my friend, your peoject edvelop in really hard area and time. thanks you are doing it!
\n\nyour peoject has a strong identity. it shows values. You agree with me that not everybody agrees on thos values and practises. it will come a point when (if the project arrive to a relevant size and numbers) you will be in signirficant touch with interests, groups, organizations...that let's say, have a more traditional view.
\n\none side is big conflict othe side seam to be the death.
\n\nthird way, try to include what you do with what others do, with the time things and realtionship changes and if it good and betetr, your stile will modify their ones...without conflincts...
", u'post_id': 741, u'date': u'2016-09-16 11:24:32'}, {u'user_id': 3362, u'title': u'Personalized medicine', u'comment_id': 7658, u'content': u'I\'m very intrigued by this idea: "Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine.". It would leave out the parties who suck the most money of out\xa0of the local communities. But more interestingly, it would allow for personalized medicine. People with rare diseases or allergies, who are often neglected by corporations based on economical incentives. Empowering these people with the tools to provide for themselves or have a close one provide for them seems like a revolutionary way forward. Then again, safety and legal hurdles quickly come to mind. I hope there\'s at least room for experimenting with it.
\n\n1000 people is already a lot... Congratulations!\xa0What do you feel is the biggest challenge in order to\xa0connect\xa0these existing, fragmented initiatives and replace competition in favor of cooperation?
', u'post_id': 741, u'date': u'2016-09-12 21:43:31'}, {u'user_id': 3362, u'title': u'Visual association', u'comment_id': 14448, u'content': u'Is there a time element to the graphs? Have you ever made something similar to the video below, a timelapse,\xa0for the conversation graphs?
\n\n', u'post_id': 6305, u'date': u'2017-05-08 12:37:54'}, {u'user_id': 3, u'title': u'Reference to reading conversations in opencare as networks', u'comment_id': 6887, u'content': u'Hi guys, some of\xa0you who are part of OpenInsulin project may not know about opencare too much, so here\'s a little context:\xa0Edgeryders is involved in a 2 year participatory research called opencare,\xa0on alternative solutions to health and social care problems, the big systemic ones - access, affordability, inclusivity of state provided or private\xa0services. In these two years we are discovering projects like yours, and connecting people into a community.
\n\nThe research also includes building software to visualize the\xa0conversations happening here online in graph formats *with the help of University of Bordeaux (@melancon can offer extra details if you ask him!). Some of the graphs can show nodes/ dots as people in the conversation and how they are related - who\'s talking to whom and how much, other, more advanced visualizations play with\xa0semantics based on what ethnographers code from our online conversations. These semantic network graphs can tell us what are the things being discussed, which are more central in the global network, which associations of topics are more relevant to participants, and so on.
\n\nThey all support collective intelligence: us talking with each other and generating new knowledge that can be\xa0more sophisticated but also more\xa0actionable \xa0(i.e. at the policy level)\xa0than what any of us can produce\xa0individually.\xa0
\n\nHere is an interactive dashboard - still work in progress, but you see where this can go..
', u'post_id': 6305, u'date': u'2017-05-07 11:38:10'}, {u'user_id': 3604, u'title': u'Why an App - more about the session', u'comment_id': 19945, u'content': u'Hi Noemi
\n\nThanks for the comment, questions and for connecting with me on social media as well. Thank you also for sharing the story of your great-grandma and grandma - that\'s very powerful indeed.
\n\nI must apologise for not being clearer in my original post. While the concept of discovering, telling and sharing stories about our older members of society underpins Remarkable Lives, the enterprise I am building is a social networking platform.
\n\nTo clarify, the current phase is where I am interviewing older people and publishing their stories on the photoblog - the purpose of this is to raise awareness and a sense of community appreciation around the Remarkable Lives project. If you like, what I am doing now is trying to get people tuned in to the idea of celebrating the life stories of their older relatives by actually telling some stories myself.\xa0
\n\nWhen my social networking platform (or application - hence sometimes referring to it as an App) is live, that will be like me handing it over to society, to the public, as in: "Here you are. I\'ve been telling some stories to give you a flavour of the rich and diverse lives older people have led. Now it\'s over to you to discover the stories in your own families and share them with each other." And for the general public\xa0the platform will be free to start creating Remarkable Lives profiles. Does that make sense?
\n\nAt OpenVillage I would like to:
\n\nWould that work as a session?\xa0
\n\nBest, Owen
', u'post_id': 6289, u'date': u'2017-05-08 11:34:07'}, {u'user_id': 3, u'title': u'Why an App?.. and more about the session.', u'comment_id': 16633, u'content': u'Hey, I\'m Noemi, and my story (only partially) featuring my grandma is here.
\n\nYour project is\xa0interesting to look at.. storytelling about old age is uncommon, and good storytelling in general is as well.\xa0I like the idea a lot, although I\'m not sure why you call it an app?
\n\nSuper happy about you joining edgeryders at OpenVillage. What would you like to happen at the session? Do you need people to participate in a more active way, if so, how? Even if it is a demo, from past edgeryders events I can say it\'s been the greatest when the session articulates a question for participants? The time which would follow your demo/ talk is spent trying to asnwer together that question.
', u'post_id': 6289, u'date': u'2017-05-05 14:13:27'}, {u'user_id': 3604, u'title': u'Interaction', u'comment_id': 10859, u'content': u"Hi Alberto
\n\nThanks for your comment and for sharing your own experience of meeting Nicolini. What a fascinating story.\xa0
\n\nThe question of interaction is an interesting one. At this stage in my planning, I don't envisage any direct interaction other than commenting on / sharing the stories that are published via\xa0social media. This is important in emphasising the privacy and security of the platform when it is launched later in the year. When this happens, people - everyone -\xa0will be able to create profiles for their own relatives to which invited family, carers and friends can contribute. But these profiles will only be visible to those who have been given permission and, in this context, Remarkable Lives operates as a private family social network. It is also to take in account the sensitivity around the demographic's profile - we're talking about older people in society, some who are vulnerable and for whom privacy needs to be safeguarded.
\n\nThat said, there will be the facility for profiles to be made public, for example if someone has created a profile for themselves (imagine an 80-something tech-savvy person) and is happy to be 'found'. In that instance, you would be able to make contact with that person and send a message and, feasibly, begin interacting that way.
\n\nI hope this answers your question.\xa0
\n\nOwen
", u'post_id': 6289, u'date': u'2017-05-08 11:03:20'}, {u'user_id': 4, u'title': u'Interaction?', u'comment_id': 10075, u'content': u'Hello @Owen_McNeir , welcome and thanks for the proposal. I would definitely be interested in a presentation.\xa0
\n\nI checked out the Remarkable Lives website. It\'s great reading \u2013 stories of humans are always interesting. I wonder: what\'s your plan for interaction? What happens if I think Jean or Derek seem\xa0cool, and I want to reach out? I saw there is support for sharing the story on FB/TW, but that does not make a connection with the Remarkable People themselves.
\n\nBTW: in pre-Internet days, I was a musician. My band was a sort of Italian version of The Pogues, keenly interested in a "folk" collective narration of Italian recent history. We are almost an amnesiac country, and it is hard to gain access to first-hand experiences from the messy times of war, Nazi occupation, partisan guerrilla, collaborationists etc. Long story short, I started\xa0asking around and ended up in the house of Germano Nicolini, a former partisan commander and Resistance hero, later disgraced because suspected guilty of the political murder of a priest (happened in 1946), and finally found innocent (after 10 years in jail) in the mid 1990s, 50 years after the crime. No Google, no six\xa0degrees, no nothing. We wrote and published a fairly successful song about Nicolini\'s story. It put him on the radar of popular culture: while not exactly a celebrity, he became a respected voice, one of too few real elders in the Italian left\'s tribe.
\n\nHe now has his own Wikipedia page, but at the time he was floatsam and jetsam of history, just another freedom fighter gone bad. I am telling you this story because I understand the value of oral memory, and of personal relationship with the past. But I did need to wash up at Nicolini\'s doorstep, and ring his bell. I remember his initial guardedness: my story made sense to him ("you are part of my history, I want a first hand account"), but it was way out of his experience, as of my own.\xa0
', u'post_id': 6289, u'date': u'2017-05-05 08:47:39'}, {u'user_id': 4, u'title': u'Roger that', u'comment_id': 10855, u'content': u'
I\'ve been thinking and talking to our team, @Noemi & others. At ReaGent and Ekoli we have to reinvent/optimise the financial models and their implementation over the summer. We\'re going for a three month break of most of our activities for this.
\n\nI would be cool to combine this with the Wanderjahre: visit open care projects to connect them to the festival, blog about it, and also hold a session with local people around business modelling/financial sustainability. We\'ll learn for our situation, they\'ll hopefully learn for theirs.
\n\nAs for a mentor, I couldn\'t think of someone yet.
', u'post_id': 6279, u'date': u'2017-05-07 09:20:30'}, {u'user_id': 3613, u'title': u"Thanks @marcoclausen,\n\nI like\xa0your description of your\xa0community garden\xa0becoming\xa0a 'laboratory ", u'comment_id': 23537, u'content': u'Thanks @marcoclausen,
\n\nI like\xa0your description of your\xa0community garden\xa0becoming\xa0a \'laboratory for resilient forms of urban development\'. If we\'re truly open to learning - the most surprising spaces can become laboratories for new methods and models.\xa0And I totally get what you say about how unhelpful the pressure to present to the external world the successes is, in sharing and learning from the excessive challenges that community work can present.\xa0
\n\nI\'m curious to know how the informal forums to share the \'tough stuff\' are going since you posted this? Are people finding this is effective in managing work pace/load to reduce burnout?
\n\nI am also curious about the connection between burnout and governance structures. If these are designed well, could they not act to distribute the work (and the stress) more evenly? I\'ll need to reflect on and read more of the links in the thread above to see whether I agree that these are an \'attention sink\'.\xa0\xa0
\n\nFor the past two years, we\'ve been using sociocracy in our community organisation.\xa0Its\xa0brought flow and connection to all the different activites that take place in pursuit of our purpose and to sustain us as an organisation which can otherwise quickly feel like the left hand doesn\'t know what the right hand\'s doing.\xa0Its brought clarity to our decision making, and how our work is organised. I particularly value the use of consent rather than consensus which uses the criteria; \'is it good enough for now, safe enough to try\' as the basic test in approving decisions.\xa0Perhaps you\'ve come across it?
\n\nLaloux is interesting on conflict in his book Reinventing Organisations. All useful nuts and bolts of sustaining the work longer term.\xa0\xa0
\n\nWith every wish that\xa0Prinzessinnengarten will continue to thrive for many years to come.
', u'post_id': 507, u'date': u'2017-05-07 22:36:11'}, {u'user_id': 3, u'title': u'What I like about some way of organising or governance..', u'comment_id': 22469, u'content': u'.. (call it what you want)\xa0is that it makes it easier to see how/ if it would\xa0translate to\xa0other groups or settings. What we don\'t know about the ER style of\xa0do-ocracy yet is how it would work in a real life, physical place that is not an infinite playground or resource after all - that\'s why I asked @marcoclausen\xa0about ruling over\xa0the vegetable beds.
\n\nShouldn\'t a community that is healthy be better at caring for its members than one where\xa0conflicts take over? (with the shades of grey in between of couse - happiness and conflict are no absolutes).\xa0If so, then learning to minimise\xa0conflict or other kinds of distress\xa0should\xa0make it easier for activists to stay well.\xa0On learning:\xa0we\'re all doing that, but no matter how much you learn, if you can\'t keep the lights on with people staying well, then it\'s only a matter of time..\xa0As an example, a paintbrush factory-turned-contemporary art space where I\'m from in Cluj saw a huge blow\xa0after 7 years - one of the splitting factions\xa0has\xa0trademarked the brand with EU\'s\xa0OHIM, and\xa0anyone in the art community is now somewhat part\xa0of that conflict. The brand is affected, reputations too, and of course the influence achieved over the years and ability to attract funding might be too.. I\'m sure there\'s many stories like that out there. Anyway, just a thought. thanks again for the piece
Agree on all fronts, @marcoclausen . After three years of do-ocracy in Edgeryders, we are not blind to its flaws. It comes down to the lesser evil, I guess. It kind of works with us, but I would definitely not try to implement it at the nation-state level, at least not without major major revision!\xa0
\n\nHowever, do-ocracy is itself\xa0a set of rules. I like to think of it in terms of Protocol, a word that we used a lot when working on the unMonastery:\xa0https://edgeryders.eu/en/unmonastery/protocol-01-engineering-human-to-human-interaction-for
\n\nI am familiar with Graber\'s work, and, like you, I enjoyed it too.\xa0
', u'post_id': 507, u'date': u'2016-06-16 10:23:45'}, {u'user_id': 3326, u'title': u'low-overhead', u'comment_id': 19633, u'content': u'Dear Alberto,
\n\nthanks for the reply. i totally understand the wish do not get mixed up with organizational structures. and even though i don\'t like the word "governance" too much, i think for a long term survivale of projects, and also to keep them transparent and open, there should be next to the possibility to do also some general rules and mechanism. i also refer here to the idea of the commons, that are often practically related to very clear rules (including sanctions, and instruments to deal with conflict). I think Jo Freemans "the tyranny of structurelessness" (http://www.jofreeman.com/joreen/tyranny.htm) is still - after 40 years -\xa0 relevant, and i also enjoyed reading David Graebers "Utopia of Rules" where he also refers to Freeman.
', u'post_id': 507, u'date': u'2016-06-16 10:01:27'}, {u'user_id': 4, u'title': u'Lots to think about...', u'comment_id': 16817, u'content': u'Excellent piece @marcoclausen\xa0. It resonates with other stories and opinion I have heard, especially in the context on the unMonastery: many so-called social innovation initiatives (including, er, Edgeryders itself) are constantly at risk of burning out the (relatively)\xa0few people who pull\xa0most of the weight.\xa0
\n\nNoemi above seems to endorse governance as a way to mitigate friction. My point of view is that governance often is an attention sink, and could potentially make burnout worse. This is why we are so interested in do-ocracy as a way of life: it has low overhead.\xa0
\n\nOn the other hand, I could not agree more on collective learning. Our own version of that is an emphasis on documentation, so that people have a shared, written, searchable and evolving\xa0knowledge base. I think this is working quite well for us.\xa0
', u'post_id': 507, u'date': u'2016-06-15 14:29:03'}, {u'user_id': 3326, u'title': u"thanks noemi for your feedback. it's hard to ", u'comment_id': 12111, u'content': u"thanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.
", u'post_id': 507, u'date': u'2016-06-15 22:06:19'}, {u'user_id': 3, u'title': u'"The bees are happy collecting nectar in the middle of Berlin"', u'comment_id': 10375, u'content': u'Great money quote, thank you so much @marcoclausen for sharing this story.
\n\nI\'m curious, how did you learn to deal with conflicts as your network expanded so much over the years? Do\xa0you have a governance structure in place that helps you\xa0work out solutions\xa0inside the community: for example if there are differences of opinions between\xa0gardeners, beekeepers, neighborhood\xa0conveners,\xa0the association members and various groups stewarding Prinzessinnengarten. After all, you only have a limited\xa0number of vegetable beds, right?
', u'post_id': 507, u'date': u'2016-06-14 10:01:17'}, {u'user_id': 3362, u'title': u'Thanks Guido @GLS9000 for the insights. Preventative medicine ', u'comment_id': 19123, u'content': u'Thanks Guido @GLS9000 for the insights. Preventative medicine is indeed the logical path forward. This ties in with @Alberto \'s post on\xa0Amish communities I only recently discovered.
\n\nA 20-40% decrease in cost is still pretty big at this scale, I didn\'t stop to think about the absolute numbers.
', u'post_id': 6278, u'date': u'2017-05-07 12:12:36'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 18609, u'content': u'Undisclosed content', u'post_id': 6278, u'date': u'2017-05-07 21:17:25'}, {u'user_id': 4, u'title': u'Great numbers', u'comment_id': 18487, u'content': u"Thanks again, Guido. So, by making open insulin, we'd be saving maybe 500 EUR per year per patient. 80,000 is the number of diabetics in Belgium, or that of members of the Diabetes Liga? In the former case, 40\xa0million \u2013 a lot of money, but still less than 0.1% of Belgium's total health care costs.\xa0
\n\nI totally agree on preventative, by the way. This is a clear indication of the whole OpenCare project.\xa0How would you translate that into activities for Open Insulin?
", u'post_id': 6278, u'date': u'2017-05-03 20:17:44'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 17839, u'content': u'Undisclosed content', u'post_id': 6278, u'date': u'2017-05-03 19:16:41'}, {u'user_id': 4, u'title': u'"Someone is paying for the insulin" \u2013 but how much?', u'comment_id': 15736, u'content': u'Thanks everyone, especially @GLS9000 for the detailed information.\xa0
\n\nAs an economist, I resonate with Vincent\'s point: there is no free lunch, so someone has to pay for the insulin. It is very affordable\xa0to patients, but that does not mean it is cheap. Cheap insulin is resilient: even if the health care system were to undergo a financing crisis (not all that unlikely), it it\'s cheap it is probably going to stay, and even if its costs are passed over to patients... it\'s cheap.\xa0Expensive\xa0insulin, even if cheap or free at the point of delivery, is not resilient at all. It means diabetic patients are at the mercy of the political/financial cycle. Generic, open-sourced drugs are\xa0always\xa0\xa0a good thing.
\n\nGuido (and everybody), which one is it in Belgium? Is it really cheap or is it cheap to patients? How good is the Belgian state at negotiating down the price of pharmaceuticals sold in the Kingdom?\xa0
', u'post_id': 6278, u'date': u'2017-05-02 10:30:56'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 8873, u'content': u'Undisclosed content', u'post_id': 6278, u'date': u'2017-04-30 14:23:19'}, {u'user_id': 3374, u'title': u'Super interested!', u'comment_id': 19695, u'content': u'Hello @evelina,
\n\nI\'m super interested in this session! Mainly because I work in my university\'s mental health office (added a link to more info on this at the bottom). What I\'m curious about is one of the points you outline relates to combating school/university failure as it relates to burnout.\xa0
\n\nI think this is a needed topic of discussion, and in my experience is an ever ongoing issue. However, it seems that students (myself included), often cut back on self-care when the workload is highest because they struggle with time management. This is a problem because it is precisely these times where they can most benefit from self-care practices. Would you be able to address how students can best integrate burnout prevention into their lives, and how you view universities can support them in these efforts?
\n\nhttps://edgeryders.eu/en/using-the-university-that-is-rethinking-higher-education-to-rethink.
', u'post_id': 6293, u'date': u'2017-05-06 23:47:01'}, {u'user_id': 3362, u'title': u'My question', u'comment_id': 16932, u'content': u'Hi @evelina\xa0
\n\nI would be interested in exploring the differences between burn-out (a hyped up phenomenon nowadays) and stuff that has been around longer, eg. nervous breakdown and depression. My doctor briefly told me about the differences once and what I took from it is that the difference is vital, as cures are different for each (apart from the fact that a cure is also different for each person). With the hype of burnout, people are sometimes pushed into the wrong \'diagnosis\'. This is clearly bad for finding the right cure, but in my experience, understanding of what you are going through is also a big factor towards getting better.
\n\nHow do we help people find the \'affliction\' they have?
', u'post_id': 6293, u'date': u'2017-05-06 06:53:00'}, {u'user_id': 3, u'title': u'A question', u'comment_id': 12705, u'content': u'Yeah, when you have a few minutes do\xa0formulate one question that participants will be able to answer (or move closer to the answers). I think it will make a difference and we\'ll also be able to promote it in order to see who else is interested. A question (my framing) and story I recommend reading is this one, although not sure how it would be addressed at OpenVillage. Probably a discussion.. Given culture and creativity are anyway your other interest, maybe you can tailor the course so as to connect to this discussion? Just a thought for how it could be narrowed down, feel free to ignore if it\'s far from what you wish to do.
\n\n', u'post_id': 6293, u'date': u'2017-05-05 22:24:15'}, {u'user_id': 3082, u'title': u'Hey! Thanks for your comment... I do agree ', u'comment_id': 11995, u'content': u'Hey! Thanks for your comment... I do agree it might be too intense for few hours but I can always squeeze into smaller version of course! This course can be both two days or half day workshop...
', u'post_id': 6293, u'date': u'2017-05-05 15:25:08'}, {u'user_id': 3, u'title': u'More info would be useful', u'comment_id': 10097, u'content': u'Hey, so is this a proposal to run the course at the OpenVillage Fest?
\n\nIf so, I suggest a way to narrow the goals to one or two, and think of a format that fits into maximum a few hours.\xa0
\n\n@evelina what do you think? Also, what\'s the story behind it\xa0the course\xa0seems really ambitious, is this something you do at the university or as a freelancer and have found helpful for those attending?\xa0
', u'post_id': 6293, u'date': u'2017-05-05 10:26:14'}, {u'user_id': 3606, u'title': u'Tweet', u'comment_id': 14028, u'content': u'Hi @Noemi, it seems you are judging the book by it\'s cover but i think we cant give some light and explanations to very single point or question.
\n\nThe project is to be developed for individuals, hobby-farmers to the mega agricultural industries and it\'s not only for B2B bussineses.\xa0
\n\nWe have more than a lot of arguments covering our requests and developing. Investing on this project will bring financial and social goods and will give a very effective and professional solution to this space of the working cycle.
\n\nThe website is just an presentation of our main activities, but programming and developing is something we do on other behalfs of time.
\n\nYou can also visit\xa0the\xa0social network, founded\xa0by our Team member Mr. Herolind Luzha and it\'s under https://www.itrendin.com/ to find or download it on forAndroid or IOS.
\n\nWe have 2 type of fundraising presentations and also a very precissive description of the project which i would gladly also share with you.
', u'post_id': 571, u'date': u'2017-05-06 22:30:52'}, {u'user_id': 3, u'title': u'Harsh startup life?', u'comment_id': 10147, u'content': u'Hi @Jack_Dushica , I dont know many Edgeryders community members involved in B2B services, maybe other people do. In fact, the future of agriulture looks very different for some of us - more like direct small food chains and relationships between producers and consumers seen as supporters.\xa0See Matt\'s new venture here.
\n\nYou say your problem is fundraising and you seem to be a startup? How do you see this as an action of taking/ giving care?\xa0Setting your soul on it seems reasonable, better than selling your soul\xa0
Such an important topic!
\n\nI\'ve noticed, when discussing trust personally, that the meaning of trust is not as clear as it is sometimes assumed. To me there are levels of trust, that can be drawn out by asking questions like "would you trust this person to..." You can sort these questions by asking a bunch of them together about the same person. "... take a letter to the post office"; "... keep my house keys for emergency use"; "... look after my child when I\'m away" (and what age of child?) "... not to trick me or take advantage" -- all these (and many more) might have different sets of people who I would trust in that way.
\n\nFor me, it\'s about having reasonable confidence that they would act in specific situations in a way similar to the way I would. Normally we get this only through personal experience. But if we documented trust more, we might be able to trust people based on the recommendations of other people we trust, for instance.
\n\nMaybe worth exploring?
', u'post_id': 788, u'date': u'2017-05-06 06:59:32'}, {u'user_id': 2915, u'title': u'The attitude you bring to the party', u'comment_id': 11618, u'content': u'I agree with Alberto, epsecially in terms of having low risk starting points. \xa0Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only "let someone in" after they have demonstrated in some way their worthiness.
', u'post_id': 788, u'date': u'2016-10-14 15:19:27'}, {u'user_id': 4, u'title': u'Is it not the other way around?', u'comment_id': 9116, u'content': u'My take on this is: you create trust by collaborating, not the other way around. Collaboration comes first.
\n\nThe trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.\xa0
', u'post_id': 788, u'date': u'2016-10-14 14:45:32'}, {u'user_id': 200, u'title': u'great vision!', u'comment_id': 21640, u'content': u"It's a great vision. Personally, I see a direct analogy with knowledge of using open source software. If we were to arrange ourselves into levels of knowledge, with one person at each level looking after a few at the level below, then all questions could be answered without the experts being overburdened. Why not the same with health? Well, the danger is undiagnosed serious conditions, and that has to be factored in somehow. But apart from that, it's what we do anyway in a small way. If there is something the matter, we start by asking maybe an older family member, then if that person is not sure, we can ask a nurse, then a general practitioner, then a specialist....
\n\nNot sure how relevant this is to GNU health, but I hope the idea is of some interest.
", u'post_id': 535, u'date': u'2017-05-06 06:50:33'}, {u'user_id': 3409, u'title': u'Undisclosed content ', u'comment_id': 17664, u'content': u'Undisclosed content', u'post_id': 535, u'date': u'2016-09-27 22:06:17'}, {u'user_id': 3400, u'title': u'GNU Health is a sister initiative which we ', u'comment_id': 13941, u'content': u'GNU Health is a sister initiative which we discovered at the Open Source Initiative and some time later at the Internation Symposium on Open Collaboration.
\n\nGNU Health concept is simple as free software: all people should collaborate to build a common of knowledge instead of building competitive, exclusive systems that hinder access to healthcare services of quality. GNU Health ensures that the different therapists and doctors who follow our children have the best available information about them, so that they can provide the best advices for the best health outcomes.
\n\nThanks for all efforts put in developing this project!
', u'post_id': 535, u'date': u'2016-09-19 22:26:43'}, {u'user_id': 3409, u'title': u'Undisclosed content ', u'comment_id': 11539, u'content': u'Undisclosed content', u'post_id': 535, u'date': u'2016-09-27 22:02:24'}, {u'user_id': 3, u'title': u"Pings to make sure you don't miss the GNU Health project!", u'comment_id': 9430, u'content': u'Nice to meet you @Meanmicio, I\'m nowhere near as knowledgeable about health systems as you, but some people here in the community are and should definitely read this (they may \xa0have already heard about GNU Health): @Ivan_Ezeigbo @wachsmuth @markomanka who can maybe help share this with networks.
\n\nAre you finding that people and\xa0established institutions\xa0are transitioning to this easily (ideologically speaking)\xa0or what do you see is an average learning curve? I\'m guessing it\'s not a coincidence that it\'s becoming adopted more so in less\xa0developed areas than the big West, which are already set on their ways.\xa0
', u'post_id': 535, u'date': u'2016-09-16 21:21:05'}, {u'user_id': 200, u'title': u'self-acceptance', u'comment_id': 29954, u'content': u'Full self-acceptance is very hard. Often we need the support of others to be able to see our "shadow" (in the Jungian sense).
\n\nTo me, sadness, unproductivity and inefficiency are symptoms of not having found satisfying connections in life. But the answer to that is often not "trying harder" to find something. It might more often be letting go of images of oneself that one has taken on from other people. Finding oneself is easy to say, and really hard to do. Let go, be open, listen, accept help...
', u'post_id': 666, u'date': u'2017-05-06 06:41:00'}, {u'user_id': 8, u'title': u'Also, brainball (later mindball)', u'comment_id': 29063, u'content': u'\n\nYears ago I came across this hilarious and frustrating game:
\n\n"Brainball is a two-player game where relaxation is counterbalanced with the desire to win. The little ball on the game\'s table is telekinetically controlled through the use of each player\'s brainwaves. Both a calm state and a stressed state have a direct influence on the match. The player who is most passive can watch the ball roll away towards the opponent\'s goal and a prospective win."
\n\nSlate wrote an article about it a while back: Bowling with Brainwaves
', u'post_id': 666, u'date': u'2016-06-17 20:11:48'}, {u'user_id': 8, u'title': u'Apparently doing nothing has become a sport in South Korea', u'comment_id': 27792, u'content': u'\n\nI came across this article about a competition in South Korea where people do, well, nothing and immediately thought of this conversation thread...
\n\n"Since the first competition was held two years ago, it\'s evolved into a full-on pageant with a panel of judges and a set of strict rules\u2014no phones, no talking, no checking your watch, no dozing off. WoopsYang said more than 2,000 people signed up for the 70 contestant slots this year, and she had to hold qualifying rounds to select the best candidates."
\n\nFull article available here: http://www.vice.com/read/doing-nothing-has-become-a-sport-in-south-korea
', u'post_id': 666, u'date': u'2016-06-17 20:05:15'}, {u'user_id': 3, u'title': u'As I remember you..', u'comment_id': 26944, u'content': u'.. Hi @Jasen_Lakic thank you for your candidness. and welcome back, it\'s been a while since Brussels!\xa0I think there is somewhere a click one must do even to say: "i\'ll stop and think and find myself" as you said you did.. and that moment is so relative that a lot of the time you don\'t recognize it\xa0and think that maybe you should push yourself a little more because the problem is in something you\'re doing wrong. \xa0Unless you have gurus around you who can push you into that realisation. Did any of you try seeing a therapist at any point?\xa0Or @ivan, did anyone advise or help you get to a strategy of taking better care of yourself?\xa0\xa0(btw nice to see you back as well!)
', u'post_id': 666, u'date': u'2016-04-26 04:31:12'}, {u'user_id': 3206, u'title': u'expectations and value systems', u'comment_id': 26015, u'content': u'Hello friends,
\n\nVery interesting topic and quite a common problem as well i believe. I will share with you few things in hope it is beneficial :).
\n\nHaven\'t felt depression in years, sadness very rarely and short termed. I believe sadness comes from our inability to accept a certain situation, our resistence to it. If there is a situation we don\'t like we have only two choices: Accept it as it is or change it or at least try to change it. In both situations we shouldn\'t be depressed. If de did all in our power and failed to change it, we should be satisfied with ourselves and accept the outcome, since there is no alternative. However i do believe once sadness comes we should not try to supress it, let it run its course because anything else would be commiting violence upon our own nature and sadness would still manifest itself somehow.
\n\nGood at school, always calm and good kid, inventive, reading since i was 5, playing chess since my 6th year...i can\'t really tell how many times i heard my family members say this dreadful phrase to their children: "just take Jasen\'s example, can\'t you be like him".\xa0
\n\nThan i was 27, married, hated my job, didn\'t love my wife, i was miserable and had a lot of health issues. I started wondering: "how did i end up right here at this moment in life?" I knew i totally went off my path but didn\'t yet realise how or where is my path.\xa0
\n\nAfter realising\xa0the community in which i grew up actually applied huge subconscious pressure on me through their projections of myself, through their expectations especially, and that so many of my life\'s actions were led by those thoughts in my head which were not really my thoughts. (i actually got married because everyone was telling me it\'s the right time and after some time it made sense...how crazy!).
\n\nMy next step was\xa0selfexploration, i had to get to know myself. I stayed at home reading books for months, Carlos Castaneda\'s books were an amazing discovery at that time. I went into nature for periods of isolation where i spent my time in silence and thought, and finally after some time i started meditating.\xa0
\n\nAs far as success is concerned i agree with Alberto. Should we measure ourselves in comparison to others or by finding our own system of values and definition of success? For example i have 0 debt, built my own house by the age of 28, a good\xa0car and pretty much anything i need materially now...most of my friends think i am succesful. I would however consider myself succesful if i could succeed in creating a well balanced family full of love and respect, or if i could be nothing but a positive and inspiring experience for anyone who meets me. Or if i could attain permanent state of meditation for example. Also i have been with many women, and ofcourse friends\xa0i went out with always considered me lucky or succesful with women. Well again my definition of success is very different: i would have preferred to stay with the first one i loved...or with any i loved. Now, in retrospective i rather think i failed miserably with some of those women and brought really bad kharma on me through those "successes" :).
', u'post_id': 666, u'date': u'2016-04-26 01:42:16'}, {u'user_id': 4, u'title': u"Don't try this alone", u'comment_id': 24963, u'content': u'Inspiring, @KiraVde and @ivan (welcome back to both of you!). But I don\'t think it\'s quite that simple. "Being different", going by a different value system, is itself entropic. Here\'s why: to accomplish anything, we humans need other humans. Other humans are attracted by "successful" (as per the dominant canon of what "successful" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your\xa0chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners.\xa0So, being perceived as successful increases your chances of actually being successful.\xa0
\n\nThat\'s not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.\xa0
\n\nAn unfortunate consequence of this is that, the more different you want to be, the more energy\xa0you need to invest promoting yourself. The message is "look at me, I am not a failure, I am a success by my own measure". Social media are full of this, often cloaked in hyper-individualistic narratives, of the "I quit my day job to follow my dream" type. Which is ironic, because\xa0hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need\xa0for social acceptance.\xa0
', u'post_id': 666, u'date': u'2016-04-26 08:07:33'}, {u'user_id': 258, u'title': u'Afraid of relaxing?', u'comment_id': 23909, u'content': u'I feel your plea, and as @KiraVde says I also wish I would not give too many fucks.
\n\nMyself, I am afraid of taking things easy and slowing down, because I feel that if I am not going forward I am going backwards (by whatever standard!) and.. what if I stopped caring? That scares me the most I guess.
\n\nAt the same time I see a spiritual path\xa0in finding new ways of changing yourself to overcome challenges. I see these situations like signals telling me to adapt and find a new way to fit better.\xa0
\n\nSaying that, the best strategy I have found up to now is to try to be rested, eat well, exercise, pursue some hobby and be happy. In exactly that order. As you build up energy the number of fucks given dramatically decreases and you are psychologically more resiliant. Sometimes very resiliant.\xa0
\n\nThe really hard thing for me is to realize when I am eating too much into my energy and I can become tired, grumpy, worried,\xa0overworked.. and then fearful without even realizing I am getting there. So, when you are there.. just press reset and rebuild your energy, then much of the fears of failing and checklists will just evaporate.
', u'post_id': 666, u'date': u'2016-04-25 23:13:38'}, {u'user_id': 2694, u'title': u'Discovery channel rebels', u'comment_id': 20396, u'content': u'Hi guys!
\n\nOne time I sat in grand \xe9cart position for 48 hours so that I could join the pro gym team. Just to illustrate: I\'m very disciplined and am applying to be Tina\'s new best friend. But the latest skill that I\'ve been training is to do nothing. The saying goes that\xa0a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age,\xa0I\'m not prepared to take the risk.
\n\nWhen the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things.
\n\nOne: when you look at discovery channel, animals don\'t spend all their time chasing. Most of it is just lying in the sun. No judgement necessary.
\n\nTwo: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass?
\n\nOn the question of how to\xa0help people to cope with expectations they can\'t and don\'t want to meet - \xa0I think it\'s something we each do for ourselves. Personally I draw a lot of inspiration from people who don\'t give too many fucks. So I try to be that person, too.
', u'post_id': 666, u'date': u'2016-04-25 15:41:14'}, {u'user_id': 3, u'title': u'Looking at the other components of life', u'comment_id': 16075, u'content': u'I fully recognize myself -maybe a year back or so - in this picture. The advice I\'ve been given is to learn first\xa0 to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the "professional" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can\'t do it alone, and shouldn\'t. So the challenge is finding those like minded communities which Alberto mentions\xa0and dreaming up\xa0solutions to make it better for more people. If you know of good projects do recommend, I\'m very interested.
\n\nThis talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it already:
\n\n', u'post_id': 666, u'date': u'2016-04-17 09:56:28'}, {u'user_id': 3255, u'title': u'Hello Alberto, nice to meet', u'comment_id': 11888, u'content': u'Hello Alberto,
\n\nnice to meet you too!
\n\n\u201eBut I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself in some other way.\u201c Exactly! Thanks for your ideas and input. I think that your idea of changing my own perception on success and failure is really a good starting point. But it is a piece of a much more complex puzzle, I guess. Building communities of like-minded people sounds good, too, and I see how the unMonastery project contributes to that. Maybe one could also find a way to promote an alternative vision for society within \u201emainstream culture\u201c, whatever this is...
', u'post_id': 666, u'date': u'2016-04-29 10:37:20'}, {u'user_id': 4, u'title': u'Efficient at what?', u'comment_id': 9396, u'content': u'Hello @NeleG, nice to meet you.\xa0
\n\nYour reflection is recurring in Edgeryders. I guess this is a common thread to the people on the edge. For example, the unMonastery was in part a product of the need for finding one\'s own rhythm. It turned out to be very challenging, but at least it was not the usual challenge \u2013 it was a different one.\xa0
\n\nMy personal way to look at it is to draw inspiration from biology. In the natural world, there is no one but you to underwrite your pains. Even parasites have to be good at parasitism, or they will die as individuals or go extinct as a species. At the same time, a successful species in biology is definied as one well adapted to its ecological niche,\xa0not\xa0in terms of how close it is to to the top of the food chain. A frog is not a failed crocodile: it is a successful animal by its own yardstick. Put a crocodile in a European pond, he\'ll starve to death, whereas frogs do just fine. By the same token, it would be weird to say that a craftsman is a failed CEO! He is just not.
\n\nWe should not take the analogy too far, of course. But I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself\xa0in some other way.\xa0Maybe, then, it will not be a vulnerability at all that you do not like ticking boxes! In my experience, it helps to find communities of like-minded people, because it takes a lot of effort to be alone in upholding an alternative vision of society!\xa0
', u'post_id': 666, u'date': u'2016-04-16 10:24:13'}, {u'user_id': 200, u'title': u'Find common ground, ask common questions', u'comment_id': 26013, u'content': u'This may sound obvious, but I guess one main approach is to find some point in common. Yes, the two people may come from completely different backgrounds, but there are so many aspects to life that, if we look at enough areas of life, it is extremely unlikely that nothing at all is shared.
\n\nAlternatively, try exploring questions which mean a lot to almost everyone. See e.g. https://www.indy100.com/article/the-36-questions-to-ask-that-will-make-anyone-fall-in-love-with-you--gJVkNnfRcg
\n\nSee what happened to one person trying this out in this TED talk...
\n\n', u'post_id': 657, u'date': u'2017-05-06 06:33:48'}, {u'user_id': 3385, u'title': u'Undisclosed content ', u'comment_id': 23506, u'content': u'Undisclosed content', u'post_id': 657, u'date': u'2016-09-11 10:54:18'}, {u'user_id': 3362, u'title': u'Resurrecting an old post', u'comment_id': 21816, u'content': u'I saw your post after recent activity on this thread @Alberto... I was wondering if\xa0you have read anything about rites of passage in more detail? What is the aspect that creates stronger cohesion?\xa0Is it the selection process and \'insider vs outsider\' dynamic,\xa0is it the sharing of pain and hardship that creates stronger connections between individuals, maybe another reason?
\n\nI\'ll recommend this book as well for everyone who is interested in the topic.
', u'post_id': 657, u'date': u'2016-10-23 16:28:39'}, {u'user_id': 4, u'title': u'Exploit the architecture of human cognition', u'comment_id': 19934, u'content': u'And after all of this inspiring stuff, I am going to offer some information I have come across, and that is going to sound dry and heartless in comparison.
There is a concept at the crossroads of evolutionary biology, anthropology and psychology\xa0called cultural evolution. The idea is that, in humans, culture and biology intertwine dynamically: evolutionary pressure makes us evolve mixed packages of genes and culture that make us fitter for survival. These packages repurpose and harness pre-existent packages. If you want to know more, this book is a fantastic introduction.\xa0
\n\nResearchers in this area have figured out why humans have evolved rites of passage, which can be very costly (in some tribes, young men especially have to go through gruesome trials to become full members of the tribe). So where\'s the benefit? The benefit is that these rituals cement the tribe\'s cohesion, making it more fit to withstand intergroup competition, a major driver of human evolution (and suspected to have been a driver of non-human primates before we came around). How can rituals cement cohesion across participants? They harness certain biases in human cognition. For example, it has been found that doing things in sync enhances the propensity to cooperate. Consider the following\xa0experiment.
\n\nSo, to make strangers connect, a sensible strategy seems to be to "think like a hacker" and\xa0exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem\xa0to be hardwired for forming groups. It is very, very easy to make humans behave like a group \u2013 check out Wilfred Bion\'s work for that.\xa0
\n\nObviously, this same kind of hacking is successfully used every day by racist groups, who succeed in making people hate and despise other people just like them, who have never hurt the haters and whom said haters do not even know anyway. Like the Force in Star Wars, human cognition has a dark side... but you guys, I\',m sure, will stay away from it.\xa0
', u'post_id': 657, u'date': u'2016-07-09 19:16:45'}, {u'user_id': 2915, u'title': u'We used to call it "eye vibing"', u'comment_id': 17086, u'content': u"Back in the hippie glory days some of the more spiritually-inclined ones of us routinely engaged in this sort of mini-meditation with another person. It wasn't structured; we would just do it when we felt like it.\xa0 It often led to better mutual understanding and empathy, which was usually discerned in whatever conversation followed the session. \xa0
", u'post_id': 657, u'date': u'2016-07-08 19:12:04'}, {u'user_id': 3, u'title': u'The eyecontact experiment', u'comment_id': 14948, u'content': u'A very basic event which happened in a lot of cities over the last years, including\xa0where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one\xa0would\xa0stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in.
\n\nMore about this and a video:\xa0https://inspiralight.wordpress.com/2015/06/21/the-touching-truth-behind-the-eye-contact-experiment/
\n\n', u'post_id': 657, u'date': u'2016-04-10 14:34:00'}, {u'user_id': 2569, u'title': u'Sounds great', u'comment_id': 7848, u'content': u"Hi Phil,
\n\nThis sounds wonderful. Make sure you let ER community\xa0know when you are planning this to happen. I know i'd love to come along if i can.
\n\nAlex
", u'post_id': 657, u'date': u'2016-04-09 17:54:58'}, {u'user_id': 3, u'title': u'On group therapy in Ireland', u'comment_id': 21420, u'content': u'Hi again @MAZI ! It just occured to me that you should connect with our community members who reported on a similar approach in Ireland.\xa0
\n\nMore importantly for advancing your cause, I think it is very impactful when people who are or were once patients share deep insights about the experience. This is the case of @Sharon_Kinnane and her story is here. Curious to see if\xa0your groups might benefit from a connection abroad that helps your future projects in some way.
', u'post_id': 751, u'date': u'2017-05-05 13:43:20'}, {u'user_id': 3421, u'title': u'Undisclosed content ', u'comment_id': 16765, u'content': u'Undisclosed content', u'post_id': 751, u'date': u'2016-09-19 16:38:18'}, {u'user_id': 3, u'title': u'How do people fight the stigma?', u'comment_id': 10263, u'content': u'So inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles,\xa0even skill up in a process that difficult.\xa0
\n\nThere are no expert lectures and no self-pity parties. -well said. @kate_g, another edgeryder,\xa0said something similar about \xa0how conversation in which neither party is an expert can be lifechanging.
\n\nI\'m curious about\xa0the\xa0group which seems more or less open - can anyone who reports\xa0feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?
', u'post_id': 751, u'date': u'2016-09-19 09:11:03'}, {u'user_id': 3, u'title': u'Schools = buildings?', u'comment_id': 16570, u'content': u'Hi @SaraAsnada I\'m curious how did you get your first school? Did you have a building where you could organise things?\xa0Currently,\xa0running more schools and activties means that you have different places where people meet to learn?\xa0
\n\nI\'m asking because you posted in Policies of Care - did the City help in the beginning or did you have your own assets?
', u'post_id': 828, u'date': u'2017-05-05 11:17:45'}, {u'user_id': 3520, u'title': u'From Imagery to identity', u'comment_id': 9935, u'content': u'Thank you for sharing this very interesting experience.
\n\nThe language is for sure the most powerful \u201cvehicle\u201d for integration and new ways of teaching might make it happen faster and deeper. Language also can instigate to newcomers a different view of themselves by providing new words, different expressions and more detached emotions.
\n\nI wonder if you ever involved second generation Italians in your projects. I was just reading this article that made me think of many connections with your activities.
\n\nI\'m pretty sure also @Franca and @Medhin_Paolos may be interested.
', u'post_id': 828, u'date': u'2017-05-04 14:26:36'}, {u'user_id': 3604, u'title': u'Thanks Maria', u'comment_id': 30320, u'content': u'Thank you @Maria \xa0. That\'s really kind of you to give me this encouragement - very much appreciated. I hope to have the opportunity to share the project in more detail with you and the wider Edgeryders community.\xa0
', u'post_id': 810, u'date': u'2017-05-04 16:39:50'}, {u'user_id': 3279, u'title': u'Great initiative', u'comment_id': 29965, u'content': u'@Owen McNeir Remarkable lives is a fantastic initiative.
\n\nA lasting legacy of someone\u2019s life, experiences and expression of their values. It\u2019s definitely an opportunity to bridge the gap and reflect on their life journey and achievements. \xa0Communities benefit from a cultural history that may otherwise be lost. The older generations is a tremendous resource and can certainly instruct us with words and stories of times past, and share a lifetime of accumulated wisdom.
\n\nTelling these stories helps counter the perception that older people in care homes have nothing left to offer society. Success with Remarkable Lives! I look forward to hearing how it develops.
\n\n@Sharon_Kinnane @Noemi @Owen_McNeir
', u'post_id': 810, u'date': u'2017-05-04 16:28:51'}, {u'user_id': 3604, u'title': u'Thank you ', u'comment_id': 29728, u'content': u'Many thanks @Sharon_Kinnane \xa0!
', u'post_id': 810, u'date': u'2017-05-04 16:40:46'}, {u'user_id': 3533, u'title': u'Undisclosed content ', u'comment_id': 29548, u'content': u'Undisclosed content', u'post_id': 810, u'date': u'2017-05-03 22:37:49'}, {u'user_id': 3604, u'title': u'Positive social impact through community support', u'comment_id': 29083, u'content': u'I\'ve read avidly all the posts in this thread, all the inspiring stories and the challenges people have faced. With this kind of outpouring of support and collaboration, the world should really be a much happier place. I guess it will take time.\xa0
\n\nFor my part, I\'m gladdened to read everyone\'s experiences and the fulfilment that you have gained through the help, care and fostering of both informal and formal communities.
\n\nLater life is my particular area of focus and I see on a daily basis the powerful effects that positive communities can have on our ageing society. As has been pointed out elsewhere here, it\'s not just on the individual at the centre -\xa0in my case, older people - but on those around them. I run a social enterprise called Remarkable Lives (for which I\'ve just posted a proposal for OpenVillage Festival) which is all about celebrating the life stories of older people to help change society\'s perceptions of later life. In practice, the great benefit of this activity comes from encouraging multi-generational and community connectivity.
\n\nIn other words, harnessing the power of personal stories to help bring people together. In the end, I believe, that\'s something we can all identify with, just as the stories here from @Sharon_Kinnane \xa0and @Noemi \xa0, @steelweaver \xa0and @Maria \xa0, @WinniePoncelet \xa0and @ybe \xa0all testify.
', u'post_id': 810, u'date': u'2017-05-03 14:21:09'}, {u'user_id': 3279, u'title': u'Keep the the conversations open', u'comment_id': 27824, u'content': u'@Noemi\xa0The program was for all students. As far as what was the \u201ccrossover\u201d there were numerous reasons. One of the main factors that I think diminished the resistance, was realizing that within a group of people, and the diverse cultures, there was a slew of similarities. The challenges were the same, the way the challenge presented itself may have been different. Students seeing breakthrough conversations- gaining confidence to overcome challenges. The safety net of the group/community and explore better ways of interacting with others. The strict standards of confidentiality were equally as important. Records of participation were not accessible to parents, teachers, faculty, and deans etc. Unless there were certain circumstances. The students themselves had to give authorization for anyone\u2019s inquiry. Which made the students in control of the situation.\xa0 Which is always of value.
\n\nBeing a university student \u2013 as you know -- can be a difficult balancing act. It is easy to get weighed down with the pressures of academics, social life, and choosing a major and so on.\xa0 If personal problems are piled on top of these pressures, it\u2019s easy to get overwhelmed. There were different groups and workshops which made it easy for them to identify with.
\n\nThere was distress tolerance, learning how to improve coping skills, groups range in\xa0diverse areas.\xa0 Workshops were topical with a therapeutic focus and the students realized they were helping each other. Encouraging open and frank discussions while getting to the core. As a psychology student, we started a group with the focus of awareness of mental health and resilience (it started as a project) For students by students -showing support is beneficial to manage the inevitable ups and downs and the resources available. \xa0Mental wellness was brought into the light \u2013 which it\u2019s ok to talk about it. From there the students that were not really \u201cinterested\u201d took another look at the options available with a different perspective.
\n\nYears later when working with JP Morgan Investment in NYC I did facilitate\u2013 employee support programs.
\n\n@ the Story you mentioned- quite interesting! open discussions help.....\xa0can\u2019t get any more open than Twitter. \xa0Using it to share info, raise awareness and openly discuss mental health problems from different perspectives.\xa0Social media is changing the world, and its changing how people with issues connect with each other. The capability to learn from , share not only in the immediate localities but over the globe.
', u'post_id': 810, u'date': u'2017-03-25 23:20:57'}, {u'user_id': 3533, u'title': u'Undisclosed content ', u'comment_id': 27643, u'content': u'Undisclosed content', u'post_id': 810, u'date': u'2017-05-03 22:33:27'}, {u'user_id': 3, u'title': u'Other examples of networks', u'comment_id': 26967, u'content': u'Wow, I did not know this about you @Maria ! How useful it is..
\n\nThe student program you mentioned, was it addressed to\xa0any and all students? What was it exactly that helped them cross that point between resistance and accepting support? Have you been involved in actually providing assistance? Wow, that programs seem like they are not hard to implement (even if non-mandatory one can still promote them so that you have more people asking for help than with the offer absent!). I wonder why we never had those. I just realised there is a personal story there - from the two hardest years I\'ve had as a masters student. Maybe I will write it someday soon.
\n\nAlso, how do you feel about a sort of less formalized, adhoc group therapy via twitter? There is a story here about organising twitter chats to access information and support - and supposedly it can get therapeutic, maybe you would be interested to connect with the team at WeCommunities?
', u'post_id': 810, u'date': u'2017-03-22 20:49:12'}, {u'user_id': 3279, u'title': u'Networks are crucial to coping -mental well-being', u'comment_id': 26061, u'content': u'@Noemi @Sharon\xa0Interesting topic- thank you @Sharon for sharing. my background is in clinical psychology and International Business so this is coming from a different perspective. There are substantial benefits to group therapy, in addition to human and contact and the openness of being completely vulnerable. Too often, there is a stigma attached and people don\u2019t want to share their experience and rather keep in within. \xa0Group therapy helps realize you\u2019re not alone. Many patients enter therapy with the disquieting thought that they are unique in their situation, that they alone have certain frightening or unacceptable problems and thoughts.
\n\nWhile it\u2019s true that each of us is unique and may have unique circumstances, none of us is alone in our struggles. \xa0It great reduces isolation and alienation. It increases the sense that \u201cwe\u2019re all in this together,\u201d and kind of normalizes the individual situations. While members, in turn, encourage each other for support, feedback, and connection, instead of getting all that from the clinician.\xa0 By sharing experiences we all learn from each other and navigate out of their current situation and ultimately helps to find your voice in the sense of relating to others.\xa0 On the flipside, it takes strength and some recognition of the needs of others to function well in a group, not be destroyed by it. Creating the community atmosphere to overcome challenges and gain confidence.
\n\nOn another note, at university, they had \u201cprograms\u201d in place and designed to enhance the student\u2019s life, as @Sharon\xa0mentioned young adults can be very hard on themselves.\xa0 Aided in concerns or problems such as a feeling of low self-esteem, anxiety, depression and academic concerns.
\n\nIt was made almost mandatory by the dean and resident advisers to participate in these groups. There was resistance at first by many and that kind of tapered off. Being a psychology major we helped develop these groups in collaboration with various student groups. It was quite astonishing to see the resistance then you see the connection that was made over time and the participants, well some of them anyway changed their direction and went into this field so maybe it was a chance to tap into their real path they were destined to follow. Through difficulties, we usually discover what we were meant to do. Each one teach one to reach one! Networks can indeed support and enhance the quality of life and provide a buffer against adverse life events and difficulties.
', u'post_id': 810, u'date': u'2017-03-28 05:11:13'}, {u'user_id': 3403, u'title': u'@Sharon you are so right to say that ', u'comment_id': 24078, u'content': u'@Sharon you are so right to say that deep healing comes through human contact and openess -
\n\nThank you for sharing your story with us
', u'post_id': 810, u'date': u'2017-01-21 13:52:31'}, {u'user_id': 3533, u'title': u'Undisclosed content ', u'comment_id': 22821, u'content': u'Undisclosed content', u'post_id': 810, u'date': u'2017-01-22 13:11:29'}, {u'user_id': 3362, u'title': u'Thanks, some thoughts', u'comment_id': 22611, u'content': u'Thanks for taking the time to write your views on things @Sharon_Kinnane .
\n\nIt\'s a harsh truth that there is no cookie cutter strategy, that everyone has to go through their own process, solve their own puzzle. Although this process is different for everyone, for each part of it there are similarities with someone, somewhere. To me it appears that a big part of the search is identifying pieces of your puzzle\xa0in other people (eg. some advice)\xa0and testing if it gets you closer to finishing your puzzle. That\'s where community comes in handy: a large group of people equals a lot of potentially useful pieces. The analogy is a simplification, but it helps me make sense of it.
\n\nYou say\xa0some people find the idea of a group therapy unsettling. I am one of those people. It\'s not the sharing with strangers or\xa0the speaking up. I could even live with\xa0the religious connotations, though I have a light allergy to most things that involve ritual. I think the reason is the lack of richness I experience in these group interactions. I find one on one conversations\xa0or reading people\'s stories like yours\xa0much more rewarding.\xa0
\n\nHowever, when I went through a darker period, it was also a group of people that helped me get out. It was a series of stories and great conversations, offline and online, one person at a time. Most of them will never meet each other.
\n\nDefining what constitutes a community, a group, or what is just\xa0collection of individuals that share a friend is not the point.\xa0I guess you could say that the form the group or community takes differs for everyone. Or that the healing process is about meaningful interactions with others, however that may work for you. Helping others is an underrated aspect of this.
', u'post_id': 810, u'date': u'2017-01-21 19:10:22'}, {u'user_id': 3533, u'title': u'Undisclosed content ', u'comment_id': 22093, u'content': u'Undisclosed content', u'post_id': 810, u'date': u'2017-01-21 15:41:31'}, {u'user_id': 4, u'title': u'Heads up for mentions... ', u'comment_id': 20576, u'content': u'Calling @Noemi and @steelweaver\xa0
\n\nMentions on edgeryders have a minor (but annoying) bug: the name of the user mentioned needs to be followed by a space and nothing else. Like this: @Alberto , but not like this: @Alberto. See the difference? Putting in the extra dot means the software is looking for a user called "Alberto.", which course is not there.
\n\nAs a result, @Sharon_Kinnane and @ybe had not received notifications from your mentions... until now.\xa0
\n\nSharon, welcome from me too! That was quite the story. Like Noemi, I find super interesting that you single out "community" as your most important resource in coping with all these problems. Several people here seem to agree with you. This suggests that a good way to help mental health patients might be to turn every one of them into a healer for others, participating into a community healing itself. This came up in the story by @alan . His doctor suggested he gets involved in mental health advocacy immediately after making the diagnosis (full story). What do you think?\xa0
', u'post_id': 810, u'date': u'2017-01-20 05:43:00'}, {u'user_id': 3533, u'title': u'Undisclosed content ', u'comment_id': 17561, u'content': u'Undisclosed content', u'post_id': 810, u'date': u'2017-01-21 13:48:05'}, {u'user_id': 393, u'title': u'Economic crisis and changing minds', u'comment_id': 15313, u'content': u'Hi @Sharon Kinnane. Thanks for sharing your story.
\n\nIt\'s left me wondering how widely your experience is shared by people in Ireland - to what degree the economic situation over the last decade has eroded people\'s ability to cope, or woken people up to the need for solidarity and community, or just caused (young) people to leave the country, and how that feels to those who still live there.
\n\nGlad to hear the acupuncture was helpful! I was talking to an Irish acupuncturist just the other day and it sounds like they face many of the same hurdles around perception and bureaucracy there that we do in the UK.
', u'post_id': 810, u'date': u'2017-01-19 18:55:00'}, {u'user_id': 3, u'title': u'Very helpful to learn about coping and isolation', u'comment_id': 12480, u'content': u'I see your points and they all make sense for why group therapy can be so much more helpful than relying solely on close ones. I\'m thinking - not sure though\xa0- that there is probably a limited amount of pain that another person can empathize with or take upon themselves, even as they love us dearly and would do anything for us. Also, I\'d read about how wanting too much to\xa0"fix\xa0it", whatever it is.. can be alienating because it means projecting\xa0too much onto someone. It also\xa0makes\xa0it harder for the person looking for human support and understanding, above all.
\n\nIf you have ideas on how networks can improve mental healing, I would definitely be interested. There is also an incredible post by @kate_g on community interventions and how collective recovery\xa0was achieved by a traumatised group of Kenyans. Kate\'s story is here.
', u'post_id': 810, u'date': u'2017-01-21 14:14:00'}, {u'user_id': 3533, u'title': u'Undisclosed content ', u'comment_id': 11421, u'content': u'Undisclosed content', u'post_id': 810, u'date': u'2017-01-21 13:24:30'}, {u'user_id': 3, u'title': u'A question and some intros', u'comment_id': 8294, u'content': u'That sense of community and connection is the most important aspect to life
\n\nThat is something many people are experiencing or gravitating towards, but one hardly says it the way you did. Thank you for that, and for sharing your story with honesty, @Sharon_Kinnane. Are you part of any formalized groups for support or\xa0sharing therapeutical knowledge? You mentioned group therapy, is there something you enjoyed particularly about how it works?
\n\nNow for some intros:
\n\nI\'m one of the community members often around. I have experienced my own share of anxiety after graduating because I didn\'t want the money grabbing either, and was not willing to compromise. Luckily those times are over for now, it\' funny how anything that offers\xa0some stability gives one comfort.\xa0
\n\nYou might want to read and meet @ybe, whose on journey is dedicated to making mental support more readily available, irrespective of labels like patient, doctor, "in need of care" and so on. She\'s actually on a bus tour\xa0right now to get the work started!
', u'post_id': 810, u'date': u'2017-01-19 09:59:06'}, {u'user_id': 2551, u'title': u'There will likely be a mobility focused co-design challenge ', u'comment_id': 25789, u'content': u'here soon. Just wanted to let you know - there seems to be a lot of overlap. So far it is only in brainstorming stage. Did you somehow document some of the outcomes from you workshop online? And do you know of good resources to get everyone on the same page for such an event?
', u'post_id': 819, u'date': u'2017-05-04 12:28:05'}, {u'user_id': 3, u'title': u'Admission is sometimes the hardest submission', u'comment_id': 24857, u'content': u'I read that somewhere, and interesting how it holds true in this case.
\n\nI said it elsewhere, is there a way to think about recruiting from the very community someone whom the city can trust to run co-design sessions? or experiment: some ran by people already on board, some ran by people brought in aka\xa0citizen experts..
\n\nThank you for staying in the loop @Matteo - it helps knowledge buildign a lot. Also, when I saw @zoescope s tweet about a feature in Corriere della sera I knew what it was
Thanx @Alberto and @Noemi, your posts combined make sense of what is happening here at l\u2019Isola District.
\n\nLast Wednesday we had a Kick off meeting to share the idea behind Open rampette to a crowd of local businesses, people with limited mobility, makers, associations, activists together with City of Milan civil servants as well as civil servants coming from neighboring cities.
\n\nPutting together these people, with a purpose, in the iconic La Stecca 3.0 community center created a favorable atmosphere, as such. The way the meeting was managed made also a difference. In fact City of Milan started \u201cadmitting\u201d that the law (see above) was created without enough stakeholders\u2019 engagements and it resulted in limited compliances. The meeting was the occasion to amend the situation by experimenting a talk at a different level based more on moral suasion than power games.
\n\nWhen @Rossana introduced the Open care approach and @Costantino talked about the co-design method, people were interested as well as suddenly engaged. It seems it worked. Since we announced we\u2019d organize a couple of co-design sessions, we\u2019ll see how many people will actively engage.
\n\nIn her introductory speech, the City councilor Cristina Tajani\xa0said that helping enforcing this law isn\u2019t just fair and mandatory, but it may also turn economically profitable for local businesses. Implying that more accessible businesses might have more clients among disabled and caregivers, but also among people that favors living in an equal opportunity neighborhood. This is the point to me. I have the feeling that this initiative is going to be successful here (a track of what\u2019s going on will be provided as it happens) because of the nature of this area.
\n\nThis place, even if it\u2019s recently gentrified, succeeded in keeping its original community spirit. There are plenty of small independent shops, recreational spaces, associations and spontaneous groups. People who cares. In other words it doesn\u2019t take a single specific reason to wish shops and restaurants to be accessible for all. People, at times, might just follow their sense of community and contribute. \xa0\xa0
', u'post_id': 819, u'date': u'2017-04-21 12:40:37'}, {u'user_id': 2551, u'title': u'Dynamics a little different here', u'comment_id': 22307, u'content': u'I would imagine (given enough info flow to the potential users) the first couple of shops to do it would get the largest share of extra customers. Those could be specialised shops, or shops with special locations (close to housing units for mobility challenged people - if Milano does things like that).
\n\nThe tricky bit is making customers and shops aware of each other - but I would expect this to be possible through special interest channels (self help groups, care community, etc.).
', u'post_id': 819, u'date': u'2017-05-04 12:23:16'}, {u'user_id': 4, u'title': u'"Not just an obligation, but an opportunity"', u'comment_id': 19824, u'content': u'This sentence brings back memories, @Matteo ! Back in 1980s, I was active in the environmentalist movement, and we used to say exactly the same. Waste water filters, air pollution scrubbers... guys, these are opportunities!\xa0
\n\nIt was not true. Not really. A top brand, or a very early mover, could gain marketing advantages by putting in place serious cleanup\xa0efforts. But for most small manufacturers in my native Emilia, these were just costs. The benefits went, by definition, to the\xa0whole planet.\xa0
\n\nHowever, here\'s what happened over the decades: businesses started to realise they had done (albeit kicking and screaming)\xa0the decent thing. The region had become more livable. As a territory (and not so much as single\xa0businesses) they had indeed gathered some competitiveness.\xa0
\n\nIn your case, I think, "it\'s an opportunity" is a little more true. Your barber salon\xa0or gorcery store\xa0has a\xa0ramp. The parent with the stroller, the person in the wheelchair can get in easily. They get a good experience. They are more likely to come back to you. But even here, I suspect that the "area" approach is going to be stronger: the message that registers is not "you, personally,\xa0can gain a business advantage by servicing people with reduced mobility", but "here in Milano we make everyone feel welcome". Not so much the extra profit, but the civic pride. Not the homo oeconomicus, but the "we".\xa0
\n\nHow is it going yet?\xa0
', u'post_id': 819, u'date': u'2017-04-13 17:37:21'}, {u'user_id': 3, u'title': u'Consumers =supporters', u'comment_id': 17073, u'content': u"You're right, in the CarrotMob people, as in the money spenders, are supporters, because they do it for the cause more than financial consumption. NB they are different than the civic and environmental activists and may not be prone to acting by themselves or coming to your meetings. But they are a force in that they can be activated in well designed campaigns. It's like awareness raising, but with actions as outputs (in many cases it means buying from those businesses to reward their move towards greater sustainability).
", u'post_id': 819, u'date': u'2017-04-14 07:32:04'}, {u'user_id': 3520, u'title': u'Consumers - a driver for change', u'comment_id': 14016, u'content': u'Thanx @Noemi, we have already got through @Living_street since it was instigated by a Municipality, but we had missed @CarrotMob. We find it quite inspirational since it is purely based on positive instences. In fact in our pilot phase starting 14th april we\'ve included (you\'ve got me... I am directly involved) many different stakeholders including active citizens. Even if we haven\'t thought of them as consumers, therefore, empowered with "incentives".
', u'post_id': 819, u'date': u'2017-04-11 13:51:50'}, {u'user_id': 3, u'title': u'Calling experts on urban mobility and policy', u'comment_id': 10471, u'content': u'You might want to check out the approach of Living Streets (in Ghent, Belgium) - they\xa0rethought mobility (car free areas in the city)\xa0through a multiyear project . What I learned from them is that it takes sustained effort and some competent leadership that understands both civil service, how policies are made and incentives of the community. In that setup, the convener was not the city itself, but an independent organisation. @Living_Streets can correct me if I\'m wrong.\xa0
\n\nSpeaking of incentives, I heard good things about the CarrotMob approach Generically speaking,\xa0the logic behind it is pretty cool: businesses who agree to make changes in how they work get a boost in consumer support. I\'m sure Milano must have similar groups of community organisers that can (again) be credible interfaces - so "mobs" actually show up and make a difference in the incentive structure.
\n\nAre you directly involved in this collaborative law enforcement @Matteo ?
Despite a cold and rainy evening the FES cycling event was successful. \xa0The test riders got carried away pedalling with FES activated legs. This was an open air event showing functional and fun use of scientific results. The\xa0imperession was that the BerkelBike was useful and we should work on making more readily available.
\n\nMore information here:http://wehandu.it/it/eventi/
', u'post_id': 759, u'date': u'2016-10-12 11:43:44'}, {u'user_id': 3331, u'title': u'Mapping', u'comment_id': 27818, u'content': u'Hi @alberto, you are very right.. However I have been cycling around milano on tandem with a trailer (thats a long veicule) and two kids. I\'ve learned that the trick is to know where to go\xa0and its a challenge (https://edgeryders.eu/en/can-we-hack-or-tweak-maps-to-help-where-infrastructure-fails-for-soft) we have to work on after our kick off event :http://wehandu.it/it/fesbici/
', u'post_id': 759, u'date': u'2016-10-08 12:01:40'}, {u'user_id': 2551, u'title': u'Talk to the Queen of Shitty Robots!', u'comment_id': 27568, u'content': u'\n\n\n\nYeah she has a thing with electric shocks.
\n\nI think she could help with outreach in many interesting niches. And I can see her doing it in a fun & viral way.
', u'post_id': 759, u'date': u'2017-05-03 16:32:35'}, {u'user_id': 4, u'title': u'Wrong guy', u'comment_id': 27319, u'content': u'I am no cyclist, and have left the country five years ago. \xa0So no, I guess I am not the right person.
Yes @alberto that\'s the key and why we do a FES cycling event. We also need marketing guys to promote and recruit (we have not been effective at that). Can you or others help out?
', u'post_id': 759, u'date': u'2016-10-08 15:53:06'}, {u'user_id': 4, u'title': u'The virtuous cycle of non-excluded people blazing the trail', u'comment_id': 26048, u'content': u'Traffic is\xa0scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition \u2013 it is unusually flat for Italy, and that helps.\xa0When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness.\xa0Bicycle lanes where almost absent. As a consequence, only "extreme cycling" happened: young, fit\xa0men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this:
\n\n
But over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles\xa0a day.\xa0Eventually, the city council started to take\xa0cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.\xa0
\n\nWhat this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of\xa0early adopters that pave the way (literally, in this case) for everyone else.
', u'post_id': 759, u'date': u'2016-10-04 14:15:00'}, {u'user_id': 3331, u'title': u'One issue reveals another', u'comment_id': 23387, u'content': u'Dear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc.
\n\n@WinniePoncelet, it could be very good if you could elaborate on why you don\u2019t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get?
\n\nYou have a good point,@WinniePoncelet, \xa0we could imagine raising funds to have a FES bike that people could try locally.
\n\nI\u2019ve learned two things recruiting wheelchair users as testdrivers
\n\nThere is a perception that it may be physically harmful
People are afraid of traffic. There is a perception that there are nowhere to use the a Handbike
As for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.)
\n\nAs for 2. We need a method of showing where it\'s possible to go safely, (Google maps in italy does not support cycling). \xa0@Francesco Maria ZAVA\xa0and others we could\xa0work on this
', u'post_id': 759, u'date': u'2016-10-04 12:57:34'}, {u'user_id': 3362, u'title': u'Thanks for sharing this @Rune. I cannot begin ', u'comment_id': 19646, u'content': u'Thanks for sharing this @Rune. I cannot begin to imagine how good it must feel for someone with paralyzed legs to bike independently\xa0again.\xa0We have\xa0good biking infrastructure in my city/Belgium in general, but I rarely see handbikes actually.\xa0
\n\nAbout where to try\xa0the FES bikes: are the bikes\xa0customized to the user? Or could you imagine a network of users who are up for letting others test their bike from time to time. On top of that people meet and connect, they are more involved and it\'s not a huge cost for anyone.
', u'post_id': 759, u'date': u'2016-10-04 11:09:55'}, {u'user_id': 3340, u'title': u'Can we go further about that? ', u'comment_id': 13970, u'content': u'it\'s really amazing, nice job @Rune, in my country there is a lot of people who suffer from weakening leg muscle and poliomelite. \xa0Those people are usually left aside and need someone\'s hand to move. On the other side, infrastructure and access to office, public area are not yet developed.
', u'post_id': 759, u'date': u'2016-10-04 10:09:24'}, {u'user_id': 3, u'title': u'Can we get this story to your proximity in Italy?', u'comment_id': 10564, u'content': u'Thanks @Rune, impressive how people find their way and maybe mobility doesn\'t have to be such an exclusionary issue after all. \xa0I\'d appreciate if you, your team and the WeMake team also share this with some of the people engaged so far in OpenCare,\xa0more minds put together will come up with super insights and helpful advice.. Let\'s do this.
\n\nPing @Rossana_Torri to help us reach to some key networks in the city. Thanks!
', u'post_id': 759, u'date': u'2016-10-03 15:57:13'}, {u'user_id': 2551, u'title': u'Connect with Rafael and Victoria', u'comment_id': 16132, u'content': u'here: https://launchforth.io/infocentrousmajac/#user-content
\n\nor https://www.linkedin.com/in/rafael-lugo-82236b41/
\n\nThey set up something similar in Mexico afaik.
', u'post_id': 564, u'date': u'2017-05-03 16:14:39'}, {u'user_id': 3, u'title': u'"WE DON\u2019T START WITH TECHNOLOGY. WE START WITH PEOPLE"', u'comment_id': 7961, u'content': u'I really liked this slogan on your website, team Medic Mobile!
\n\nI don\'t know if "community health worker" is a term you use for both official and volunteering members (it appears they are different from professionals though)\xa0but the fact they they are real power users of the technology and take the message to local governments seems like quite an asset. Is there professionalization happening and are the ranks of\xa0CHWs growing ..? I suspect there \xa0must be other kinds of rewards other than intrinsic, given that these people are crucial in providing care and their work is largely underpaid. Very curious, thanks for the response.
\n\nThis story could be interesting for @Marc_Elva , @rem_it , @Maria ,\xa0@Michel .
', u'post_id': 564, u'date': u'2017-02-09 19:20:00'}, {u'user_id': 3, u'title': u'The purple network', u'comment_id': 9238, u'content': u'@jimmytidey pulled out a twitter network\xa0(see spreadsheet with detailed info)\xa0with some hashtags and accounts relevant to our opencare conversations. A LOT of it is on open source and open hardware solutions, tentatively around UK and broader. Maybe you\'ll find interesting contacts?
\n\n', u'post_id': 6281, u'date': u'2017-05-03 02:33:33'}, {u'user_id': 3400, u'title': u'Behaviours', u'comment_id': 20791, u'content': u'Thank you for the connections. I did not know about this theory and read about it and the practice, it is interesting!
\n\nWe are continuing to develop them to do clinical tests in November.
It sounds like interesting work, a some people around here (like @Costantino , @Rune and @Alexander_Shumsky ) are into making for health, and will surely be curious about your device.\xa0
\n\nAs for payer vs. receiver: yes, in the end citizens always foot the bill. But the risk-sharing mechanism we have in place makes it so that,\xa0you do not have to pay for your own\xa0treatment. You are paying a little of\xa0everyone\'s\xa0treatment. This encourages a behaviour economists call moral hazard: if I \xa0do not diet and neglect my exercise hard, everyone else has to pay for my heart surgery: no additional cost for me (except the illness itself, of course). Conversely, if I do adopt a very healthy lifestyle, I still have to pay for my health insurance, just like the guy who eats McDonald\'s twice a day every day. The Amish, for example, refuse to take health\xa0insurance on the ground that it deresponsabilises people, and they do behave quite differently when it comes to prevention.\xa0
', u'post_id': 6274, u'date': u'2017-04-27 18:14:36'}, {u'user_id': 3400, u'title': u'Payment and games', u'comment_id': 15352, u'content': u'Thanks @Alberto for your message.
\n\nMh, in fact both state and insurers are paid by citizens, but the solutions set rarely preserve the collective interest. :-/ Same happens when organizations or institutions are subsidized by public funds, but result in non-adaptable innovation...
\n\nRegarding the four video, the first is preventive and for all (coping with stress), the second is aimed at education in asthma, the third is based on a therapy for CF, and the last builds on a lung capacity test recognized for a follow up of certain respiratory conditions. For the two last, we develop open-source hardware to capture pressure and flow, using Arduino or Raspberry Pi. One additional layer is that these technologies are collectively created, which enables to increase awareness about respiratory health.
Hello\xa0@breathinggames\xa0, it\'s hard to disagree. Elsewhere in the project we have documented that a shift happens when the care-receiver is also the payer: suddenly, prevention becomes far and away the best way to spend your money (and time) on care. This is rare, because the person receiving care is almost never the person who pays for the care: the payer is either the state (more in Europe) or insurers (more in the USA). This is associated with an attention to therapy and a de-prioritisation of prevention.\xa0
\n\nI looked brefly at your games. It seems the first three are about teaching people with respiratory conditions what to do or not do, whereas the fourth is a quantified self kind of thing, right? Also, in the fourth game you need dedicated hardware to measure air pressure. How is it done? Do you make your own, with Arduinos etc?
', u'post_id': 6274, u'date': u'2017-04-27 08:51:00'}, {u'user_id': 3362, u'title': u'Finding the ideal solution', u'comment_id': 27802, u'content': u'What I make of this is that it\'s not about choosing between the open source or current proprietary\xa0code/technology approach. It\'s clear to me that both do things well and other things wrong\xa0and that an ideal situation lies somewhere in between.
\n\nI find it\xa0is recurring when the open tech/science ideas meet\xa0traditional ideas that the discussion is seldom held around the question: how can the different approaches\xa0learn from each other, in order to implement a better solution?\xa0Rather, it is usually about what approach is the best as is.\xa0Result:\xa0boring discussion and no real progress.
\n\nHow can we get to a situation where this conversation is not about an ideal solution, but about\xa0finding an ideal solution?
\n\nPing @Alberto
\n\n\n\n\n\n', u'post_id': 712, u'date': u'2017-04-27 12:27:00'}, {u'user_id': 4, u'title': u'"FDA\'s limited resources for looking at the code of the devices"', u'comment_id': 26950, u'content': u'@Nadia at one point was proposing to look into a community-run certification scheme for the code in medical devices, vaguely inspired from http://www.peertopatent.org/\xa0.\xa0It could be one of the projects in OpenAndChange!\xa0
', u'post_id': 712, u'date': u'2016-09-09 17:18:02'}, {u'user_id': 3180, u'title': u'Some references', u'comment_id': 26028, u'content': u'First off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months.
\n\n\n\nI think we have some miscommunication here. I\'m not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has \'similar\' issues to the issues of open source.
\n\nOn your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by \xa0P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don\'t believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper "Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis.
\n\nThere are many more things we might discuss about regulation, such as the FDA\'s limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMAUDE/search.CFM
\n\nBy making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I\'m not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I\'m happy to provide more reading and evidence, when time permits.
', u'post_id': 712, u'date': u'2016-09-09 08:26:02'}, {u'user_id': 4, u'title': u'Some real issues here', u'comment_id': 23651, u'content': u'@Natalia_Skoczylas and @Eireann_Leverett I guess we need your opinion here. In this comment above Rune raises some real points on\xa0IEC 60601 and issues of trust with technology.\xa0
', u'post_id': 712, u'date': u'2016-08-27 09:10:27'}, {u'user_id': 2551, u'title': u'Nice points', u'comment_id': 21955, u'content': u'I can\'t really answer your question "Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals?" as I am not aware of applicable metrics that do this with little/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms.
\n\nAs for " Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer\'s names? Not sure, but couldn\'t you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product?
\n\nOf course I agree that such probing questions need to be asked, and you can\'t expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome.
\n\nHowever, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term.
\n\nLastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto\'s comment.
', u'post_id': 712, u'date': u'2016-08-29 19:58:59'}, {u'user_id': 3331, u'title': u"Hmmm, it's an interesting and complex issue.", u'comment_id': 21205, u'content': u'I\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It\'s accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \xa0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it\'s not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\xa0have grown to feed lawyers and bureaucrats )
\n\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\xa0edited by someone with an obfuscated name\xa0?
\n\nMore interesting. Is there some documentation that opensource software is more reliable compared to\xa0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker.
\n\nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.
\n\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison.
\n\nBottom line @Alberto
\n\nIt would be a great idea to develop a FAQ or rather a book of knowledge/best practice for OpenSource Medical Devices.
\n\nPlease let it be based upon evidence and legal references
', u'post_id': 712, u'date': u'2016-08-21 00:58:50'}, {u'user_id': 3, u'title': u'Love the activist touch to medical care', u'comment_id': 16928, u'content': u'Thanks Natalia and Eireann for reporting on this. I had read Marie\'s story a while ago on the internet and was impressed by the humility with which she had approached medical security. After all, she rightly stated that the benefits of having the pacemaker far\xa0outweigh the risk - which is why probably many patients are looking away or de-prioritizing this.
\n\nI\'m also reminded of @Rune\'s story where an upgraded\xa0medical care also needs an alliance between\xa0patients/consumers and researchers\xa0(he\'s arguing for more\xa0system availability for\xa0cheap, effective medical tech).
', u'post_id': 712, u'date': u'2016-08-04 10:12:03'}, {u'user_id': 4, u'title': u'MedDevice FAQs?', u'comment_id': 10583, u'content': u'Wow, this is great news indeed. Welcome @Eireann_Leverett !\xa0
\n\nI was at that talk at 32C3. It was a real eye opener. It\'s all very good and well to make fun of the Internet of Things: my favourite is the Twitter account Internet of Shit (https://twitter.com/internetofshit), that churns out a sad/hilarious/scary gallery of smart diaphragms, Internet-connected pet feeders that starved your cat to near-death because the server went down ("It\'s literally just a timer! WHY does it have to be online? Oh, right, so that they can show me cat food ads"), and keyboards that predict your next keystroke and leak all your keylogs all over the Net.\xa0
\n\nBut when you are running that stuff\xa0inside your body,\xa0that\'s where it gets a lot less funny.\xa0
\n\nI love this idea:
\n\npreparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.
\n\nA sort of FAQs, of checklist, if I understand correctly.\xa0Does it make sense to try and prototype this at one of the Open&Change events in the fall?
\n\n', u'post_id': 712, u'date': u'2016-08-03 20:31:38'}, {u'user_id': 3400, u'title': u'Everyone should be able to adapt (lifesaving) health innovation!', u'comment_id': 8152, u'content': u'Is community-based and participatory health care sufficient?
\n\nThe World Health Organization (2003) states that "Effective treatment for chronic conditions requires [...] a system that is proactive and emphasizes health throughout a lifetime."
\n\nFor us, three conditions are required to "Ensure healthy lives and promote well-being for all at all ages" by 2030, a United Nations Global Goal:
\n\nDo you agree? Would you see other essentials?
\n\nWatch the practice we develop at Breathing Games.
<Groan> Patent trolls. Typical.
\n\nI have no idea how to do due diligence on the license status of bio lab processes. Am afraid I can't help much here, except by putting the word out in search of a kind soul who knows and will share what she knows. Is Francis going to be leading this?
", u'post_id': 6253, u'date': u'2017-04-26 15:02:36'}, {u'user_id': 3362, u'title': u'Moving the lab + dwelling on the safe side', u'comment_id': 21900, u'content': u"As we have to unexpectedly move the ReaGent lab this summer, the event won't go through. This also allows us to dwell on the safe side regarding our communication stance for Open Insulin.
\n\nThere is, however, a small\xa0event on data early May in Brussels where I will briefly present the project in ~5min and\xa0see if any people want to participate. That seems more like the kind of outreach we should be doing at this point.
", u'post_id': 6253, u'date': u'2017-04-25 16:26:50'}, {u'user_id': 3362, u'title': u'Science Espresso', u'comment_id': 19864, u'content': u'@stevenvv90 , @ritavht , @arnepauwels \xa0, @CatherineS , @Angela_Pisani \xa0/end wall of pings
\n\nTechnopolis asked ReaGent to do a small event on citizen science in health care a while back. The Science Espresso format is a short talk and interaction of\xa0a (citizen) scientist with the audience.
\n\nWe had already set the date on 12 July 2017, 7pm. I figured we might as well use this time to present Open Insulin. The timing is suddenly close by (they want to start communications soon), so we should decide this week.
\n\nFollowing the discussion on timing of communication: what are your opinions on this: is it too early or do we go for it?
', u'post_id': 6253, u'date': u'2017-04-14 13:36:29'}, {u'user_id': 3362, u'title': u'News from CCL', u'comment_id': 14285, u'content': u'Anthony @dfko \xa0is checking with the person in charge of preparing samples & the\xa0guy who is helping with shipment where they are at with. Status update soon.
\n\nThey are changing the genetic construct a little bit to optimize it towards production (this confirms what we discussed shorty during the meeting @ritavht, @stevenvv90 \xa0). CCL has worked out the growth and expression well, so they will drop and change some elements (eg. gfp visualization is not needed anymore). We will be receiving the first construct however, as it will be better to get started.
\n\nRegarding the cost estimate for our first steps, Anthony can answer specific questions about the cost of materials. I\'ll follow up on that.
', u'post_id': 6253, u'date': u'2017-04-14 13:18:00'}, {u'user_id': 3, u'title': u'Good work and proper welcomes.', u'comment_id': 6851, u'content': u'Hi all, just to chime in and welcome on board @Scigrades , @stevenvv90 , @CatherineS , @arnepauwels , @GLS9000 , @ritavht .
\n\nLet me know if you need help browsing edgeryders or the OpenInsulin\xa0discussion group. A User Manual for the platform is here, should you need it.
', u'post_id': 6253, u'date': u'2017-04-13 11:31:53'}, {u'user_id': 3, u'title': u'Done.', u'comment_id': 12358, u'content': u'.
', u'post_id': 822, u'date': u'2017-04-26 09:37:34'}, {u'user_id': 3002, u'title': u'Is it possible to move the story?', u'comment_id': 11123, u'content': u'Hi @noemi! We got in touch with @daniele_creti , he told us that they will finalise the application soon. We were wondering if it is somehow possible to move this story to the Maker In Residence section. Thank you!
', u'post_id': 822, u'date': u'2017-04-26 08:27:45'}, {u'user_id': 3, u'title': u'What made you think of this solution?', u'comment_id': 6886, u'content': u'Hi @daniele_creti nice to meet you! I\'m Noemi and working with the opencare teams in Milano, I\'m not sure who you know or have been in touch with? Or are you interested in the WeMake residency?
\n\nIt\'s strange that given the usefulness, the idea has not been done yet, or has it?
\n\nAnyway, this sounds like a pretty collaborative project so I wanted to let you know there are community members in Berlin who also designed something to provide\xa0care for newcomers - support for navigating the city in a more interesting\xa0non-touristic way.\xa0Newcomer\xa0got started last summer and I suspect it also used geo\xa0data to provide information about things in the city. Feel free to contact them. @Milan_Siegers should know about the stage of the project.
', u'post_id': 822, u'date': u'2017-04-13 12:14:02'}, {u'user_id': 8, u'title': u'What is the communication for?', u'comment_id': 26665, u'content': u'I once got a useful heuristic for shaping effective communication. Basically whatever you craft has to answer the following questions (with a "yes"): Is it here? Is it now? Does it affect me? Is there anything I can do about it?
\n\nMore generally what is the behavioral change that you want to achieve with each outreach effort?
', u'post_id': 6234, u'date': u'2017-04-10 19:40:38'}, {u'user_id': 3362, u'title': u'Great, @mboto from the KASK Laboratorium will also ', u'comment_id': 25946, u'content': u'Great, @mboto from the KASK Laboratorium will also be there. She\'s looking into building an arts project around Open Insulin. Maybe there\'s options to\xa0combine efforts there.
', u'post_id': 6234, u'date': u'2017-04-20 10:07:12'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 25945, u'content': u'Undisclosed content', u'post_id': 6234, u'date': u'2017-04-18 21:31:08'}, {u'user_id': 3362, u'title': u'Welcome, small correction', u'comment_id': 25943, u'content': u'Hey @GLS9000 thanks for reaching out and welcome to the platform! It would be super interesting to hear your input.
\n\nI\'m afraid there has been an error on my part, sorry. We meet every two weeks in the lab on Wednesdays, during the open lab night at ReaGent. I wrote down the wrong date in the notes, which is where @ritavht \xa0got it from. The correct date and time is\xa0Wednesday the 26th at 8pm. I hope you\'re also available then?
', u'post_id': 6234, u'date': u'2017-04-18 19:25:46'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 25932, u'content': u'Undisclosed content', u'post_id': 6234, u'date': u'2017-04-17 13:37:39'}, {u'user_id': 3580, u'title': u'@Guido', u'comment_id': 25912, u'content': u'Hi Guido, can you join us at the next meeting? April 27th @20.00 @ReaGent. We can use your input in the research part as well.
', u'post_id': 6234, u'date': u'2017-04-17 13:11:48'}, {u'user_id': 3585, u'title': u'Undisclosed content ', u'comment_id': 25860, u'content': u'Undisclosed content', u'post_id': 6234, u'date': u'2017-04-17 12:57:31'}, {u'user_id': 8, u'title': u'Benoit has some experience of this', u'comment_id': 24766, u'content': u'Will ping him to see if he might be interested.\xa0
', u'post_id': 6234, u'date': u'2017-04-12 16:45:17'}, {u'user_id': 3362, u'title': u'Synergies', u'comment_id': 24716, u'content': u'I agree capacity is the bottleneck. Looking for synergies with what is already going on, within ReaGent or otherwise, is a good strategy: Ekoli, schools, universities, dedicated organisations that have some form of an\xa0educational track already (eg. Belgian diabetes liga <Dutch>\xa0https://www.diabetes.be/wat-diabetes).
\n\nI advocate for\xa0working progressively, starting with things that can be made quickly (knowledge tidbits, short posts, graphics, ...) while building up reach and resources for harder things.
\n\nIdeally all educational material can be shared with Sydney and Oakland and made so that it requires minimal effort to adapt it to the local conditions. This goes for local use as well:\xa0if we can make it so it is easily used by any type of\xa0organisation for many types of audience, spread it openly, we save ourselves a lot of groundwork. It takes a\xa0bit more coordination work, however it translates in more reach for everyone involved.
\n\nYouth education would be an exception, as fitting it into the local educational system will always require some work. In the Belgian case, I think we have enough experience with Ekoli to do this. We can try to share this experience through an appendix though.
\n\nWe should flesh out a good synergy with the goal of the Open Insulin project as @Noemi mentions. Ideally the three points made by Anthony can be integrated in Niek\'s idea. Content on insulin/diabetes\xa0is the \'vehicle\' for explaining less visible/more abstract things like open source and citizen science.
', u'post_id': 6234, u'date': u'2017-04-10 10:06:49'}, {u'user_id': 3362, u'title': u'Purpose of communication & demand from people', u'comment_id': 21693, u'content': u'Over time we have often heard the desire of non-biologist people to learn about biotech & synthetic biology. Paving a way for interested people to learn about these subjects with Open Insulin as a case study\xa0and storyline might be a win for all. It\'s outreach, combined with education and combined with training people to work with us on this. The latter is one of the things needed to keep pushing the project and citizen science in general forward.
\n\nThere\'s plenty of biohacklabs around the world offering introductory courses like this. I believe\xa0CCL even has some intro courses @dfko ?
', u'post_id': 6234, u'date': u'2017-04-12 13:36:00'}, {u'user_id': 3580, u'title': u'insulin on the molecular level', u'comment_id': 21617, u'content': u'Hi\xa0@NiekD,
\n\nI\'m planning to include how insuline works on the molecular level in my biochemistry course. Happy to assist in the writing of this part.
', u'post_id': 6234, u'date': u'2017-04-08 10:46:40'}, {u'user_id': 4, u'title': u'Capacity...', u'comment_id': 16832, u'content': u'Hello @NiekD , welcome to Edgeryders.\xa0
\n\nI do not have much experience in these areas. They all look really useful. IMHO what matters is capacity. How many people do you have to throw at the problem? How much time do they have? How much experience? Etc.\xa0
\n\nFrom my understanding, ReaGent is strong on education projects. So, that would be my recommended starting point. Make a great education project linked to Open Insulin; sell it in Gent and beyond. This is a win-win-win proposition, because it builds on existing expertise and\xa0reinforces ReaGent\'s reputation in its main "business" area. You other, broader proposals can be taken on too, of course, but before you start designing I would recommend making sure there is at least one person who takes responsibility for driving them forward.\xa0
', u'post_id': 6234, u'date': u'2017-04-07 15:53:45'}, {u'user_id': 3, u'title': u'Purpose related to OpenInsulin or diabetes education in general?', u'comment_id': 10483, u'content': u'Hi @NiekD and nice to meet you! I heard good things about you
I\'m a generalist and so doing community management on Edgeryders across the different projects - definitely not a health specialist!, but here\'s my two cents:\xa0
\n\nI like the idea of using mixed media to report on any health matters - you can never have enough awareness for sure. Writing a song sounds both hilarious and ingenious. I\'m wondering though whether you\'re dreaming up\xa0a campaign to engage more OpenInsulin supporters in your project or if viceversa, to use the project as a vehicle for\xa0education, awareness etc about a widespread condition.
\n\nTo give you an idea of the many directions outreach\xa0could go, Anthony\xa0(aka @dfko here on edgeryders) made 3 points here\xa0for the stake brought forward by OI in the bigger picture:
\n\nYou can probably add more, and surely know best where you would be going. Lots of angles though, even for a general purpose, basic language campaign..
', u'post_id': 6234, u'date': u'2017-04-07 14:21:35'}, {u'user_id': 3, u'title': u'Calls for sessions done.', u'comment_id': 7310, u'content': u'Or in forever progress
They are now briefs to engage participants in submitting stories and sessions, as well as interact with others around major themes.
\n\nEach call outlines questions prompted by great stories in opencare in the last year.
\n\nStart here and browse them, if you find inconsistencies give me a heads up.
\n\n[next up for me: sending out invites + budget for the exhibition]
', u'post_id': 6256, u'date': u'2017-04-19 10:01:33'}, {u'user_id': 4, u'title': u'Welcome from me too :-)', u'comment_id': 14252, u'content': u'Alberto. And glad to meet you, @imagosuz !
', u'post_id': 6251, u'date': u'2017-04-13 17:41:40'}, {u'user_id': 3, u'title': u'Welcome on board.', u'comment_id': 6830, u'content': u'Hi @imagosuz , I\'m glad you found your way in. At times all we need is for\xa0someone to post a cry for help on the internet \xa0
I\'m Noemi, an Edgeryder since the early days and doing community management, and more and more interested in selfcare and lifestyle health, probably a no brainer for professionals.
\n\nSo with the social media and communication this\xa0structured task could be a useful start:
\n\nCurating\xa0social media digests - in practice this means you produce\xa03 headlines\xa0every\xa0day based on community stories, both\xa0older and newer\xa0(tweet format is good) that will get sent\xa0to our list of 70+ people in the opencare community so they themselves can share with their networks and so on.\xa0It takes about\xa030 mins every other day, gets you up to speed with stories and projects we\'re discovering and importantly, secures you a\xa0ticket to the Festival for Meet the OpenCarers track (for which tickets are secured through active participation - posting stories being the first, but we keep it open).\xa0
\n\nA bit of context: with Edgeryders, we teach ourselves to build rewarding event experiences by finding sweet spots for people to contribute early on and use their skills to shape them (after all we are a small team spread all over the world), so by the time we meet in a room people will have known each other quite well. I find it speeds up learning quite a lot.
\n\nIf this sounds good for you, feel free to start building the headlines by editing/ commenting\xa0here, then we\'ll transfer them into our digest. How is 3 weeks as a calendar for now? Then once we get going we might find it fun to work together and take it to the next level\xa0 \xa0Let me know.
Btw, we also have weekly community calls on Wednesdays 18:00 CET on hangouts where we can coordinate the work and debug things.
', u'post_id': 6251, u'date': u'2017-04-13 09:18:33'}, {u'user_id': 3, u'title': u'Hangouts are regular.', u'comment_id': 18088, u'content': u'Francesco, grazie. Abbiamo un luogo di ritrovo quasi ogni settimana per parlare di questione comunit\xe0. Le prossime luoghi di ritrovo dovrebbero apparire elencati in questa pagina: https://edgeryders.eu/en/whats-new
\n\n"i meccanismi sin da ora solo ipotizzati per ciascun fondatore per sostenere economicamente ed operativamente" - La strategia\xa0finora \xe8 quello di\xa0creare una rete di\xa0collaboratori\xa0che renderanno\xa0i contributi\xa0finanziari\xa0come supporto\xa0per il luogo (The Reef che va lanciato durante OpenVillage Festival) e in cambio\xa0essere partecipanti attivi\xa0inattivit\xe0.
\n\n"sia stato quanto meno ipotizzato per gli aspiranti "fondatori" un percorso informativo e formativo, da realizzare sopratutto attraverso una opportuna piattaforma digitale" - \xa0Come per tutte le questioni Edgeryders, nulla di ci\xf2 che accade in un luogo fisico resta solo un\'occasione l\xec - noi pensiamo che \xe8 esclusivo. Cos\xec abbiamo documento in linea o per l\'apprendimento e gli eventi, idealmente troveremo il modo di inviare registrazioni o riassunti in formato digitale in modo tutti hanno accesso ad essi e pu\xf2 partecipare da remoto.
\n\n(Scusate per gli errori nella traduzione, l\'ho fatto con google)
\n\n(also marking the task as done, email to openanchange partners was sent the other day)
', u'post_id': 6217, u'date': u'2017-04-06 11:02:00'}, {u'user_id': 3185, u'title': u'Alcune Domande in merito ad OpenVillage.', u'comment_id': 16775, u'content': u'Ciao
\n\nHo letto con estrema attenzione le pagine (con i diversi collegamenti ipertestuali ad altre risorse) relative all\'OpenVillage e con queste righe vorrei chiedere alcune cose.
\n\nPersonalmente sarei interessato alla costruzione del Reef/OpenVillage, possibilmente a Milano in futuro non troppo remoto, ma vorrei capire se e quanto il modello preveda una sorta di apertura alle realt\xf2 che operano sul territorio nell\'ambito, interesse-priorit\xe0 specifici, dell\'arcipelago delle disabilit\xe0 e della non autosufficienza. I temi che mi piacerebbe innestare in tale "laboratorio" sarebbero, per esempio, la realizzazione di ausili personalizzati, l\'avvio di progetti di vita indipendente, la progettazione e la realizzazione di soluzioni residenziali avanzate, la riqualificazione del tessuto sociale e la co-realizzazione di iniziative con le pubbliche amministrazioni (vedi https://edgeryders.eu/en/the-reef/in-2017-were-pushing-the-community-further-with-the-reef-and).
\n\nVorrei inoltre comprendere se, nel corso del primo anno di vita del "prototipo" a Bruxelles, sia stato quanto meno ipotizzato per gli aspiranti "fondatori" un percorso informativo e formativo, da realizzare sopratutto attraverso una opportuna piattaforma digitale, sugli aspetti internazionali europei riguardanti i finanziamenti internazionali e la disciplina unitaria del crowdfounding e crowdsourcing agevolata da forme di imprenditorialit\xe0 sociale transnazionale, sulle modalit\xe0 di adesione ad iniziative di ricerca e sviluppo tramite clustering tecnico scientifico che preveda la costituzione di realt\xe0 permanenti ad hoc oltre che considerandone tutte le implicazioni giuridiche e legali.
\n\nGiungendo infine ad un livello pi\xf9 pratico, sarei inoltre interessato a comprendere meglio i meccanismi sin da ora solo ipotizzati per ciascun fondatore per sostenere economicamente ed operativamente l\'avvio ed il consolidamento di OpenVillage.
\n\nImmaginando che tutto ci\xf2 sia gi\xe0 stato discusso nella videochat, sarebbe interessante accedere alle registrazioni Hangout in modo da garantire un allineamento informativo in merito ai progressi ed alla programmazione da parte di tutti. Vivendo in una struttura residenziale gestita da terzi e non avendo al momento una quotidianit\xe0 autonomamente gestita sotto il profilo assistenziale, per esempio, per me sarebbe pi\xf9 pratica una consultzione asincrona dei contenuti audiovideo da integrare nella costante attivit\xe0 di consultazione della Piattaforma Edgeryders.
\n\nGrazie e a Presto
', u'post_id': 6217, u'date': u'2017-04-06 07:23:53'}, {u'user_id': 8, u'title': u'the weekly community calls', u'comment_id': 9765, u'content': u"good opportunity to touch base and keep up to date on near future opportunities, one another's work etc, discuss collaborations, ask for help etc
", u'post_id': 6217, u'date': u'2017-03-29 11:00:25'}, {u'user_id': 3, u'title': u'Do new care providers register or are able to deliver services?', u'comment_id': 26966, u'content': u'This is interesting, so if you want to rethink relationships in care provision and there is a formalized understanding of who providers of care are, and who beneficiaries are, how do you expect innovation to happen? Is it mainly through the technology and methodology (the platform matching), or is it also through the appearance and registration of (until now) unregistered and informal providers? Did you see an increase in the Registry numbers, or signs that there are new actors delivering innovative services?\xa0 Thanks Matteo, maybe some other people involved in the programme might also want to join the discussion.
', u'post_id': 563, u'date': u'2017-04-06 10:49:54'}, {u'user_id': 3520, u'title': u'Agreed (in principle)', u'comment_id': 26060, u'content': u'I totally agree with you @Alberto. Too much control, paper work and red tape would make any policy selective, expensive and would weaken mutual trust between government and citizens. On the contrary, as far as I know, WeMe aims at providing Care solution to the largest audience, opening to new actors. A minimum level of control is needed to keep the programme fair, \xa0transparent and accountabile. I\'m sure @Rossana_torri and @Lucia would be more precise on this topic.
', u'post_id': 563, u'date': u'2017-03-23 17:25:57'}, {u'user_id': 4, u'title': u'Dark side', u'comment_id': 25092, u'content': u'@Matteo it makes plenty of sense. Also, it has a potential dark side: it could easily turn into\xa0a barrier to entry. I know this administration is very open, no doubt about that. So was\xa0the one before it. But structurally, quality control is always half a step away to turn into supply restriction. In Italy, as we Italians know well, the professional orders are defended in terms of quality control \u2013 but they also make some services, from taxi driving to notaries, muach more expensive than elsewhere, and not that much better. Even in OpenCare, we pick up this connection between existing systems failure and legality / regulation that tells you a clear story. The story is: sometimes trying to help is illegal. Sometimes the legitimate operators are those who are better at paperwork, not at care.\xa0
Quality control is an important function of government. You guys have to do it, of course. But certification of entities\xa0is not necessarily the best instrument to do it. For sure it is not particularly innovative: medieval Guilds already used them. It is not even particularly successful: it\xa0did not stop corruption and abuse, even in care. The Mafia Capitale scandal that emerged in 2014 involved certified social cooperatives like 29 giugno, La cascina, Domus Caritatis (source). Formal control end up emphasizing formality.\xa0Can we do better?\xa0
', u'post_id': 563, u'date': u'2017-03-17 10:58:56'}, {u'user_id': 3520, u'title': u'Accreditation', u'comment_id': 24186, u'content': u'Hi @Alberto, WeMi basically lists a catalogue of services (currently 300) to several (potential) users. Providers have to be accredited (authorized), on the basis of their competences, to display their services on the portal.\xa0City of Milan, whether covering the costs for who is entitled or just matching supply and demand, is competing on a (growing) market. As a quasi-market operator therefore CoM is trying to keep service quality at a standard and keep citizens away from "underground" economy. Does it make sense?.\xa0
', u'post_id': 563, u'date': u'2017-03-16 18:57:57'}, {u'user_id': 4, u'title': u'Register?', u'comment_id': 23171, u'content': u'Hello @Matteo , what is this "Register of the City of Milano"? How is it compiled?
', u'post_id': 563, u'date': u'2017-01-28 14:20:04'}, {u'user_id': 3, u'title': u'No doubts on some private actors using the programme..', u'comment_id': 22308, u'content': u'Thanks @Matteo , it surely makes sense. Where I was going is seeing if there is openness to include these actors to actually shape and improve the programme - for example if the programme needs better promotion or communication to reach more of those less affluent users; or better, non-jargon\xa0copy on the website etc.\xa0Is there outsourcing happening, or effective\xa0feedback gathering channels? And so on.. I think to me this would be a step towards the open policy making vision which @Franca mentioned here.\xa0
', u'post_id': 563, u'date': u'2017-01-27 12:18:30'}, {u'user_id': 3520, u'title': u'display_matching_funding_services', u'comment_id': 21260, u'content': u'Hi @Noemi,
\n\nfor as much as I know primarily WEMI is matching a number of services available among the city organizations (providers) with citizens\' needs. Provider organizations are those listed in the Register of the City of Milan, therefore they are previously assessed and qualified. Citizens are whoever need services. The matching happens mainly online. Secondarily, City of Milan subsidizes up to 1,500 euros each to less affluent users (some 3mln euros have been pladged for 2017) to access services provided through the platform. Seems to me that the most (creative) interactions can happen in WEMI physical places, that are open to citizens and associations (not only providers).
\n\nBy April 19th, 2016 Opencare local team met up in the WEMI space in Corso San Gottardo. That was an opportunity to engage representatives of\xa0\u201cSan Gottardo Social Street\u201d that gathers neighbors in order to build relationships, to share expertise and knowledges, and to implement common ideas. @Rossana_Torri\xa0might want to add something\xa0
', u'post_id': 563, u'date': u'2017-01-27 11:40:32'}, {u'user_id': 3, u'title': u'How is the City and private social agencies working together?', u'comment_id': 16324, u'content': u'Hi @Emanuela , I don\'t think we have met yet? I\'m a community manager here, and working with @Rossana_Torri and @Franca , among others.\xa0Nice to meet you and thank you for the post.
\n\nI\'m glad there is a version in English too, thank you to the person who translated from Italian.
\n\nMy question is related to the challenges you mention - needing to present the program online and\xa0in a more accessible language and so on. How do you work with the private actors? Ok, the city is the only one to finance this innovation, but does it accept consultancy or how are social agencies involved?
', u'post_id': 563, u'date': u'2017-01-26 22:24:54'}, {u'user_id': 4, u'title': u'Sostenere i "devianti positivi"?', u'comment_id': 8139, u'content': u'Interessante, @Emanuela \u2013 soprattutto la parte sui problemi incontrati. Purtroppo non capisco cosa vuol dire "esplodere le potenzialit\xe0 delle linee di prodotto del Sistema della Domiciliarit\xe0 relative agli interventi educativi e assistenziali". Preparati a dare qualche spiegazione se cerchiamo di suscitare dibattito internazionale su questi punti!\xa0
\n\nFare cambiare le logiche a soggetti che hanno gi\xe0 le loro \xe8 sempre difficile. Nello spirito di opencare, mi viene da suggerire che potreste pensare di appoggiarvi a soggetti diversi, che hanno\xa0gi\xe0\xa0le logiche "sharing" che vi interessano. In pratica, questo significa cercare e sostenere i cosiddetti devianti positivi (https://en.wikipedia.org/wiki/Positive_deviance), cio\xe8 gente che ha gi\xe0 cominciato a sviluppare soluzioni come quelle che vorreste promuovere.
\n\nMi ricordo che qualche anno fa leggevo di un caso a Firenze: una signora immigrata, con molto tempo, amante dei bambini, avevo montato un servizio in cui i genitori le lasciavano i loro bambini, e lei li faceva giocare, faceva con loro piccole attivit\xe0, etc. Sembrave una buona idea: in Italia le scuole per l\'infanzia servono solo una parte piccola della popolazione, e sono molto care. In Emilia il costo pieno (senza profitto) \xe8 stimato a 700 EUR al mese per bambino. E invece, le cooperative sociali che in Toscana gestiscono questi servizi l\'hanno denunciata e fatta chiudere: mancato rispetto delle normative regionali.\xa0Un approccio basato sui devianti positivi avrebbe invece concluso che a Firenze servono scuole dell\'infanzia basic, e creato uno spazio per la signora e per le altre persone come lei.\xa0
\n\nLa metodologia di opencare \xe8 molto adatta a trovare i devianti positivi. Si tratterebbe di fare un affondo su Milano, cercando le iniziative su cui la gente si sta automobilitando; queste sono le cose che servono davvero. E il bello dei devianti positivi \xe8 che, per definizione, sono gi\xe0 nelle logiche che vi interessano.\xa0
\n\nUltima cosa: c\'\xe8 un numero chiaramente sbagliato nel post:\xa0383.221 donne, di cui\xa0372.998 divorziate? Impossibile. Il totale delle donne dovrebbe essere sul mezzo milione abbondante, a spanna.\xa0
', u'post_id': 563, u'date': u'2017-01-18 05:49:27'}, {u'user_id': 3, u'title': u'Grazie per il tuo coinvolgimento constante!', u'comment_id': 17807, u'content': u'@Francesco_Maria_ZAVA sono in accordo. Hai enfattizzato precisamente il obbietivo finale (ma anche difficile, come tutti quelli che valgono\xa0la pena):\xa0"valorizzando inoltre le relazioni umane".\xa0
', u'post_id': 6206, u'date': u'2017-03-25 09:10:21'}, {u'user_id': 3185, u'title': u'Ping Resolved!', u'comment_id': 16032, u'content': u'\n\nSono estremamente lintrigato dalla possibilit\xe0 che questa iniziativa possa costituire una importante opportunit\xe0 di rendere concreta e percorribile quanto ideato e progettato all\'interno di OpenCare.
\n\nNon nascondo che un progetto come WeHandU, cos\xec come per InPe\', con questa occasione potrebbe davvero diventare uno strumento importante per le persone "portatrici" di bisogni e di idee che tutto l\'arcipelago delle disabilit\xe0 attende da molto tempo, per lo meno in Italia.
\n\nRune, Alexander ed il sottoscritto, per quanto ci \xe8 consentito dalle nostre competenze oltre che dalle nostre risorse, proveremo gi\xe0 in occasione del prossimo Arduino-Genuino Day a tracciare una strada che porti a rendere protagoniste le persone prima dei processi manageriali, delle tecnologie e delle economie, cercando di interpretare quanto colto dall\'esperienza all\'interno di OpenCare, oltre che dalla connessione con la Piattaforma di Edgeryders, valorizzando inoltre le relazioni umane di WeMake e delle tante persone che incontriamo addentrandoci nel mondo dei Makers.
\n\nPer quanti arrivano dalla "tradizionale" ricerca clinica riabilitativa oppure dal "mondo dell\'handicap" questo \xe8 un passaggio complesso quanto epocale che non attiene esclusivamente all\'ambito culturale o professionale.
\n\nNon vedo l\'ora di parlarne direttamente, in modo da capire come dare slancio, stabilit\xe0 e prospettiva a questa nostra idea, magari valutando le disponibilit\xe0 e le possibilit\xe0 di ciascuno per tradurla in una reale operativit\xe0.
\n\nA Presto
', u'post_id': 6206, u'date': u'2017-03-22 20:49:50'}, {u'user_id': 3, u'title': u'Incoming applications?', u'comment_id': 12662, u'content': u'How is it going @Costantino? Fyi I know one one new ER user registered via this call (did not post a story yet), but hopefully others filled out your form?
', u'post_id': 6206, u'date': u'2017-04-03 08:53:23'}, {u'user_id': 3, u'title': u'Awesome!', u'comment_id': 11670, u'content': u'@Costantino nicely done! Fyi, and I hope it\'s ok with you, I took the liberty to slightly edit and format the post (unnecessary repetitions of the name of the program, or put\xa0hyperlinks inline etc). I also assigned the post to other opencare relevant groups where people can be notified about it. Finally, I added a direct link from the site main menu on the left. I will also include the call in the community newsletter going out tomorrow.\xa0Hope it works!
', u'post_id': 6206, u'date': u'2017-03-22 11:00:24'}, {u'user_id': 1003, u'title': u'working out loud', u'comment_id': 9330, u'content': u'\n\nwe\'re publishing this content on the main channel (here and in the community\xa0section).\xa0
\n\nToday we\'ll share with you the plan for the next communication actions using our (WeMake) communication channels and the opencare ones (read buffer + facebook page) so Edgeryders can support spreading the news!
\n\nciao \xa0
', u'post_id': 6206, u'date': u'2017-03-22 10:41:13'}, {u'user_id': 3433, u'title': u'Leaves on treees.', u'comment_id': 27527, u'content': u'Thanks @Noemi and @Alex Levene. I\'m sure ECOC will help in time, but I\'m a big believer in momentum and will continue to keep active, build foundation with what we have and am looking at diferent ways to build more capacity. Appreciate the encouragement, it\'s nice to be reminded that the world is the bubble, not just the city I\'m in:) I\'ll send on details when the latest fexible structure is formed. @Nadia was brave enough to tackle the deepest part of winter here, but it\'s a different story now, people have come out of hibernation:)
', u'post_id': 6215, u'date': u'2017-03-30 08:52:25'}, {u'user_id': 3, u'title': u"You've got all in your favor", u'comment_id': 27508, u'content': u'@Bernard i don\'t see how you wont do it, with or without ECOC on board. You\'ve been building your way into this. Let me know if I can help in any way. Who knows, maybe joining, as Brussels (where I live now) is much closer than Cluj, Romania
That sounds like a wonderful way of consolidating thoughts and creating action
', u'post_id': 6215, u'date': u'2017-03-28 10:42:33'}, {u'user_id': 3433, u'title': u'Dipping our toes in.', u'comment_id': 27313, u'content': u'We submitted a workplan/budget for Pilgrim, hoping to commence in May with Monastery (for 3 weeks). ECOC 2020 is in a transitional period. They are appointing board members and should have a CEO in June, so we\'re unsure what supports we\'ll have at this stage. As we\'ve built capacity and had some things we\'d really like to try it would be a shame not to do something. 12 days seems possible, scale back on the level of activity and costs. First a Mobile Recon, a few of us plan to cycle to the castle for "leave no trace" camping in the forest. Seclusion, reflection, connecting with nature.
', u'post_id': 6215, u'date': u'2017-03-28 09:21:12'}, {u'user_id': 4, u'title': u'Thanks everyone for the feedback', u'comment_id': 26935, u'content': u'Did a second pass with some minor changes.\xa0
\n\n@Alex_Levene , we are counting on you. We are not yet organized and ready to roll, but are working hard on specifics.\xa0
\n\n@Bernard what do you mean by "a short stint at Cregg Castle in May"? The Galway crowd is ready to start\xa0colonising their own space?\xa0
', u'post_id': 6215, u'date': u'2017-03-28 08:37:40'}, {u'user_id': 3433, u'title': u'Nutrients for the for sealife, very nice.', u'comment_id': 24397, u'content': u'Looks great. Hoping to do a short stint at Cregg Castle in May. First a little Mobile Reconnaissance mid-April. Thinking in part about unemployment and transferable skills.
', u'post_id': 6215, u'date': u'2017-03-27 15:08:08'}, {u'user_id': 8, u'title': u'Works for me', u'comment_id': 21154, u'content': u'This is a succinct description and captures the spirit in which we do this. Well done, thank you.
', u'post_id': 6215, u'date': u'2017-03-27 14:19:05'}, {u'user_id': 3, u'title': u'I very much like it.', u'comment_id': 16166, u'content': u'"hacking the most fundamental connecting technology of all: the home"
\n\nPretty darn ambitious.
', u'post_id': 6215, u'date': u'2017-03-27 12:09:04'}, {u'user_id': 2569, u'title': u'Great progress', u'comment_id': 9546, u'content': u"I remain very interested in the model and idea being trialled here. I am free in May, and would be really interested in committing time and energy to helping build the Reef either in person, or from afar)
\n\nI've found myself with a bizarre and interesting arts-based project\xa0based in the UK that will take me out of commission from June-early Septmeber, but i'd also be very interested in putting my events and production skills to use helping create LOTE/Openvillage during Septmeber/October.
\n\nI'll reach out to you on a personal level to talk more about what/when and how i can help out.
\n\nMuch love to all
", u'post_id': 6215, u'date': u'2017-03-26 22:04:03'}, {u'user_id': 3, u'title': u'Edited', u'comment_id': 9601, u'content': u'I updated the calendar with the info I have - I suggest MasterClasses are singled out somehow: the pitching sessions and MoN at least.
\n\nAlso added the info about the culture we\'re building - members are not service recipients, they are contributors. And the fact that this comes with flexibility in\xa0using\xa0the guest room and office space. Keeping it vague could be OK, gives the house residents freedom to manage schedules, but it needs to be explicit in answering ("what are the concrete things I am contributing towards as a member", a paying member nonetheless)!
\n\nStill to add: (link to) how to purchase membership.
', u'post_id': 6216, u'date': u'2017-03-27 11:52:01'}, {u'user_id': 3, u'title': u' ', u'comment_id': 33556, u'content': u'', u'post_id': 6212, u'date': u'2017-07-25 10:59:04'}, {u'user_id': 3362, u'title': u'Timing', u'comment_id': 28795, u'content': u'Great! Next week we are meeting up with the team to plan the research/communications and all that. I propose from then on to start setting up the digital space, as the needs become clear.
', u'post_id': 6175, u'date': u'2017-03-23 09:31:38'}, {u'user_id': 4, u'title': u'Deal done', u'comment_id': 28641, u'content': u"Ok, it's a deal. We'll help you set up the digital space if you want (group creation, welcome message etc.)
", u'post_id': 6175, u'date': u'2017-03-16 10:33:43'}, {u'user_id': 3362, u'title': u'That sounds great!', u'comment_id': 28257, u'content': u'For what we are setting up in BE it sounds perfect as we start\xa0from a blank page. Seeing\xa0how @dfko and the Open Insulin group are already on a solid roll using their own platforms, it probably makes less sense to switch now. Same for the Sydney people I\'d guess. It\'s their call, but we can try it out first, learn and then spread it if it works.
\n\nAs it stands I think we\'ll be starting gradually\xa0in about two weeks. Looking forward to some surprises, biological and non-biological alike!
', u'post_id': 6175, u'date': u'2017-03-16 09:32:44'}, {u'user_id': 4, u'title': u'How it could work', u'comment_id': 27407, u'content': u'@WinniePoncelet | @dfko | @trythis this is a fantastic idea. We would be honoured if you made Edgeryders the home of your interaction. If you decide to go for this, here\'s how it could work.
\n\nTechnically, it\'s pretty clear. You\'d create your own project on Edgeryders. You have a forum and some other basic functionalities (tasks, documents, wikis). We would code your work using OpenEthnographer, and change the APIs so that your (coded) conversation is added to GraphRyder. This way, it\xa0becomes part of the OpenCare study. Insight produced would pertain to design/social science (what is collaboration for you, how it differs from collaboration in other OpenCare projects, how the group works as a group). They would not, I am afraid, pertain to biology!\xa0
\n\nSocially, it\'s not clear at all what would happen. Maybe nothing. Maybe OpenInsulin Global \u2013 like OpenCare \u2013 will find itself with 80 people participating in your group. This could be another source of insight: gauging how interesting what you do is to others. For me the degree of active interest in OpenCare was a real surprise!\xa0
', u'post_id': 6175, u'date': u'2017-03-14 22:38:35'}, {u'user_id': 3362, u'title': u'Nice!', u'comment_id': 27222, u'content': u'This is great! I\'d love to delve deeper.\xa0I\'ve got a good intuitive understanding of what you\'re coding, but I\'m not familiar with the practicalities and limitations. Thinking out loud here, I\'m wondering if we can somehow run part of the\xa0Open Insulin research (or any lab research for that matter) on the platform and analyse that. What insight could it produce and how? Ping @trythis and @dfko .
\n\nIn your case, you have a blanco somehow with the "team only" conversation. It allows for some crude conclusions. I wonder if you can refine the insight somehow. An other possibility: how would a blanco look if you ran this on a random research project? Run an algorithm on a classical lab diary and an open lab diary on a highly similar research topic, with types of contributors etc. taken into account? This and other options seem\xa0unpractical as the format of classical research is not very compatible. Does anyone have any ideas?
\n\nOn the matter of "the crowd": this is prevalent on so many levels. Going against this is at the core of why\xa0we do what we do in science communication and engagement. The narrative is always "the public" and "science" as seperate entities. This\xa0vocabulary already skews everything at the base. There\'s always some form of elitism, paternalism, laziness in justifying research, general lack of insight in the role of science in society and so on. Even, and most\xa0harmfully, from those that work in the exact departments dedicated to "linking\xa0science and society", often unintentionally.
', u'post_id': 6175, u'date': u'2017-03-14 20:32:33'}, {u'user_id': 4, u'title': u'On co-authorship and "the crowd"', u'comment_id': 26661, u'content': u'After reading @WinniePoncelet \'s thoughts, @Amelia and I thought to make this post part of the ethnographic coding. The role of citizens in citizen science \xa0is super-interesting, and it is part of a larger discussion on the role of communities in care, or any activity that involves "the crowd". @markomanka wrote in the OpenCare proposal that "the crowd is often considered a rightless volunteer". In science, citizens are only supposed to provide the data, but rarely process them or interpret them. In policy, they are supposed to be stakeholders and express desired and suggest ideas, but rarely to then execute them.\xa0
\n\nWhat does everybody think? If you are interested in the government\xa0side of things, I remind you we have a specific challenge:\xa0https://edgeryders.eu/en/policies-of-care
', u'post_id': 6175, u'date': u'2017-03-14 10:55:01'}, {u'user_id': 3310, u'title': u'on becoming a native...', u'comment_id': 23783, u'content': u'Dear all,
\n\nso in the end i became a case study
Reflexivity and objectivity are very connected in ethnography.
\n\nIt\'s impressive to see and compare visually the two networks and your comments are so useful for the paper!
\n\nI\'m trying to go deeper in how boundaries and tasks between the opencare network and the research are constructed and sometimes solved. By an ecosystemic and emergent approach all this gets high meaning.\xa0
', u'post_id': 6175, u'date': u'2017-03-05 09:12:29'}, {u'user_id': 3, u'title': u'Meta meta', u'comment_id': 20179, u'content': u'It just dawns on me as I read the example you are giving: as we prepare to write a paper on going from online interactions to collaboration of sorts with Federico, Ezio & co., we are in fact collaborating in the very process set out by opencare. So the very approach in writing\xa0the paper is a testimonial\xa0to its core\xa0argument. This is turning into very advanced research analysis\xa0
Special thanks to community members like the ones Alberto\xa0mentions above\xa0and @WinniePoncelet for validating our findings, it means a lot. The rest is a function of reaching as many people with this case for open and participatory\xa0science in order to grow the outcome beyond the circles of believers.
', u'post_id': 6175, u'date': u'2017-03-02 21:45:57'}, {u'user_id': 4, u'title': u"That's a really great point! ", u'comment_id': 17260, u'content': u'Whoa, @WinniePoncelet , I had not realized you were so frustrated with the way citizen science is done. I think @markomanka would agree with you here.\xa0
\n\nYour comment prompted me to expand on my anecdote of the mighty @Federico_Monaco driving this new paper presentation (in the 5th, 6th and 7th paragraphs of the post). Thank you so much, with your observation it might be even worth putting this thread in the coding queue \u2013 though this is something for @Amelia to decide.
', u'post_id': 6175, u'date': u'2017-03-02 20:36:09'}, {u'user_id': 3362, u'title': u'This makes me happy', u'comment_id': 14733, u'content': u'Impressive to see it in numbers, visuals and anecdotes like that. This is only the tip of the iceberg, surely. I see some big potential in being able to look at the research process in this way.
\n\nIn my experience with alternative research\xa0models, and especially when interacting with classically trained researchers, it does not occur to them that there\xa0are possible correlations between the research process and the value of the research outcomes. They are\xa0locked in how they have been doing things for years, naturally.
\n\nFor example, citizen science as an approach is overwhelmingly commonly\xa0reduced to an alternative method for collecting data. A tool, not a different process. A way to collect data\xa0and involve people a little by doing so, rather than involving people in the whole process and having them collect data in addition to formulating questions, designing experiments etc. all along the way.
\n\nI was at a conference dedicated to the\xa0topic last week; a full programme, even quite diverse for most standards, and data\xa0collection and related issues were\xa0all anyone wanted to talk about. Insight does not progress if the wrong questions are being asked. It is detrimental if forms of participatory science are looked at only in this way. A perspective like the one you just posted could help to radically change that, to show that better questions should be asked.
\n\nThe potential goes beyond that well into actual research. Coupled with the use of the Edgeryders platform, it\'s valuable as\xa0digital infrastructure to manage a research project, a way of setting up a \'meta\' research regarding the process, an analysis tool to see if there is actual merit to a participatory process, and a way for pouring everything\xa0into hard conclusions.
\n\nI\xa0think\xa0of Open Insulin right away @dfko . It would really drive a point home if we could validate the way you, and hopefully soon we, are\xa0doing the research.
', u'post_id': 6175, u'date': u'2017-03-02 19:24:26'}, {u'user_id': 2915, u'title': u"I think it's great", u'comment_id': 7570, u'content': u'keep it up. \xa0It should lead to more cross-pollinating. \xa0Good model.
', u'post_id': 6175, u'date': u'2017-03-02 15:56:02'}, {u'user_id': 3, u'title': u' ', u'comment_id': 33535, u'content': u'', u'post_id': 6207, u'date': u'2017-07-24 14:44:52'}, {u'user_id': 3, u'title': u'Thanks for quick updates..', u'comment_id': 25222, u'content': u"Guys, sounds great and I bet a case study like Porto's Bridge to the Future has some interesting details to it, for the learnings in OpenCare.
\n\nDo you have any idea of how outputs and outcomes from this event can feed into our online discussions and advancing the Policies of Care challenge? Let me know if I can help.
", u'post_id': 6108, u'date': u'2017-02-24 10:19:41'}, {u'user_id': 3520, u'title': u'Quick report', u'comment_id': 24477, u'content': u'The first day of Eurocities\' Study Visit has nearly finished. City of Milan and WeMake have provided the audience with an insight of OpenCare. Our 18 guests from 13 European Cities were very interested and reacted with their own examples and some questions.
\n\nThe representative of City of Porto for example, mentioned their project called \u201cBridge to the Future\u201d. They brought together elderly people, students, companies to discuss, understand and think solutions for elderly people problems. The best outcome would eventually be tested in a Shark-Tank like arena of investors, to pitch their core ideas. People asked if OpenCare has provided a budget also for prototyping. The EdgeRyders platforms rose interest in participants. Guests from France and Holland questioned if the platform was inclusive enough, given than it takes a degree of internet literacy to use it. Polish guests asked if, using English as a common language wasn\u2019t limiting. @Rossana_Torri and @Costantino provided answers and stimulated the discussions. The morning ended with a recap session where participants have been asked to provide a SWOT analysis of OpenCare. Results will be presented tomorrow in the morning session.
', u'post_id': 6108, u'date': u'2017-03-17 11:34:17'}, {u'user_id': 2913, u'title': u'Good idea!', u'comment_id': 21445, u'content': u"We'll do everything possible to make this happen.
", u'post_id': 6108, u'date': u'2017-01-30 15:01:57'}, {u'user_id': 4, u'title': u'Opportunity for gathering stories!', u'comment_id': 15414, u'content': u'@Rossana_Torri this is a golden opportunity to collect stories of open care for the policy challenge. It will require some kind of structure, though, like proper note-taking, editing notes into first-person stories, then having the civil servants upload them. This is what I did with Mercato Lorenteggio, and it worked.\xa0
', u'post_id': 6108, u'date': u'2017-01-20 12:50:18'}, {u'user_id': 2913, u'title': u'TypeError', u'comment_id': 13773, u'content': u'\n\nthere was a type error
\n\nmilano_smartcity@comune.milano.it
', u'post_id': 6108, u'date': u'2017-02-24 09:39:13'}, {u'user_id': 3331, u'title': u' Address', u'comment_id': 13699, u'content': u'Hi, @Matteo, just to let me know that there seem to be a problem with the mail adress:
\n\nDelivery has failed to these recipients or groups:
\n\nmilano_smartcity@comune-milano.org
\n\nYour message couldn\'t be delivered. The Domain Name System (DNS) reported that the recipient\'s domain does not exist.
', u'post_id': 6108, u'date': u'2017-01-31 13:09:06'}, {u'user_id': 3520, u'title': u'Sharing experiences', u'comment_id': 11382, u'content': u'Hi Noemi, I do agree with you.\xa0Even if\xa0Eurocities is a "network of cities",\xa0represented\xa0barely at administration level, in our\xa0study visits we intend to share the spirit of Open Care, that is - to include\xa0various perspectives. We\'ll keep you posted on the evolution of the agenda and of course, anythings comes out of this meeting.
', u'post_id': 6108, u'date': u'2017-01-20 09:39:58'}, {u'user_id': 3, u'title': u'Civil servants only?', u'comment_id': 8335, u'content': u'Hi @Matteo, nice to meet you and welcome to opencare.
\n\nLet us know how we can support this and do share if anything comes out of this seminar that speaks about communities\' role and contributing to better services. I hope there will be a chance for opencare to provide some serious reality checks, and from my experience that tends to happen when you have more than one perspective - policy, citizen, interest groups etc..
', u'post_id': 6108, u'date': u'2017-01-19 14:17:56'}, {u'user_id': 8, u'title': u"We'll see how this works out", u'comment_id': 11530, u'content': u'We may see general rebellion as regressive policies on multiple fronts are pushed e.g. Poland on female reproductive rights. Also national govs running out of dough = more decentralisation and growing influence at regional/local level. Mayors can have huge influence and tip scale with creative responses. One big obstacle\xa0issue is Frontex and other strong lobbies for EU border control, but as EU loses clout, also this may change. Who knows.
', u'post_id': 5234, u'date': u'2017-03-16 10:02:07'}, {u'user_id': 3, u'title': u'And then elections happen.', u'comment_id': 7469, u'content': u'I was reminded of this story when reading the headlines these days, how Germany\'s trend of receiving refugees was considerably reversed in 2016 and worse, people are now sent back to the borders of Europe (elsewhere called "voluntary deportations"?!).
\n\nAlso, I re-assigned this story to the "Policies of Care" challenge. | @Franca
', u'post_id': 5234, u'date': u'2017-01-13 09:28:44'}, {u'user_id': 1679, u'title': u'Monday should be fine as well', u'comment_id': 29062, u'content': u"Let's try on Monday then.
\n\nRuxandra
", u'post_id': 4195, u'date': u'2016-05-26 12:12:36'}, {u'user_id': 8, u'title': u"Hi! I'll be on a train then, but Monday?", u'comment_id': 28456, u'content': u'Works for you?
', u'post_id': 4195, u'date': u'2016-05-26 05:57:15'}, {u'user_id': 1679, u'title': u'Yes, definitely', u'comment_id': 27790, u'content': u'Hi Nadia,
\n\nyes definitely we can have a skype call late morning on Friday if that is ok with you. Just ping me on skype.\xa0
\n\nRuxandra
', u'post_id': 4195, u'date': u'2016-05-25 19:47:09'}, {u'user_id': 8, u'title': u'Time to dust this off again', u'comment_id': 26011, u'content': u'Ping @Ruxandra do you have time for a chat about this in the next few days? I think it may be time to look into this in the context of care. @Susa and I are running Hacking Utopia, a studio course on product design for social and demographic change at UDK. (it\'s tied to the OpenCare project). They\'re currently coming out of the research phase in which they have been guided through a process of identifying and understanding where they could make meaningful design interventions (products and or services). Today they\'re going to summarise what they have learned and what they want to build (I\'ll post documentation online here later). Next they will be actually designing the products and I think the process above could be very helpful. Would you be up for joining a skype call where we help them to think through the business modelling/sustainability design for their products?
', u'post_id': 4195, u'date': u'2016-05-24 06:00:21'}, {u'user_id': 1935, u'title': u'interested and following', u'comment_id': 23571, u'content': u'a comment to show interest and follow
\n\nbeen learning a lot since I joined this community
\xa0@TiberiusB how is this accounting system working?
', u'post_id': 4195, u'date': u'2016-11-30 21:38:21'}, {u'user_id': 3362, u'title': u'Helpful', u'comment_id': 23285, u'content': u"Thanks, this is helpful. Sorry for the late reply, your posts went under my radar. Interestingly though, the outlines of a similar approach have been forming for us since my post.
\n\nBasic backstory: we are professionalising our services as a collective of freelancers. For recurring\xa0services we have simple formats (graphic design, workshops, ...) that are easily sold and applicable to many kinds of clients. Each team member has their own specific expertise, so the division there is easily made. Eg. the workshop guy would sell workshops, but meanwhile also be on the lookout for graphic design missions. One mission could involve both writing and graphics. Collaboration is easily coordinated there. The organisation stays agile, without dependencies, with a shared story. These are the easy advantages teaming up as freelancers offers.
\n\nProjects, paid or not, are to be initiated and implemented by the champion (team member or volunteer) that proposes it, much like what you describe. Some more coordination is required and this is usually done by the champion. I'm sure the overdeliver idea is applicable to us in this early stage.\xa0Not so sure about\xa0the extra payment for carrying a project, as it varies a lot from industry to industry how much money is available for covering these costs. The client could\xa0have low funds (underfunded education system), there's plenty of competition (projects involving more generic services eg. web and graphic design) etc.
\n\nFlagship projects do create openings for higher margin formats, if we can find a way to channel it there. A hard thing to quantify and it would increase dependencies again, projects being the indirect sales strategy for other formats. Many things to be aware of, curious to see what will work best.
", u'post_id': 4195, u'date': u'2017-03-13 19:58:35'}, {u'user_id': 8, u'title': u'Encourage, support and train more people to do public talks ', u'comment_id': 23272, u'content': u'Also, build informal social events where people just meet. In what we do "sales" basically means really understanding what people you come across need and connect it with something you are doing. Then there\'s the research work to understand how they can put money into hiring you. Once you know this you can make an offer. So maybe it could work to split these tasks across the collective? We\'re getting there as we move into a space.
', u'post_id': 4195, u'date': u'2017-02-28 16:51:47'}, {u'user_id': 4, u'title': u'Maybe a little', u'comment_id': 23247, u'content': u"The traditional solution is commission on sales. We found out quickly that it does not work for a company like Edgeryders, small and new and trying to make way. Reason: we agreed we would try to grow based on overdelivery. We would compensate the risk taken by clients in hiring us by being excellent value for money. This means we would be hurt by taking 10% of or budget out to pay for the commission: we need all the money to provide the service. Essentially, we are foregoing commission to invest in reputation.\xa0
\n\nThe problem is mitigated by none of us being\xa0only\xa0a salesperson. Each person in ER gets intrigued by a project, and tries to sell it because she means to then work on it. With us, the project's\xa0champion must lead it; almost always the champion is the one closing the deal, or having worked a lot on it. So we can compensate this person by paying her a little more generously once the sale has been made. It's like an informal commission.\xa0
", u'post_id': 4195, u'date': u'2017-02-28 13:56:07'}, {u'user_id': 3362, u'title': u'Sales', u'comment_id': 23191, u'content': u'@Alberto have you figured something out for the sales? I see a similar issue popping up for us and we haven\'t found an answer yet.
\n\nIn our case, there will be some recurring and organic inflow of missions and we\'re counting on that to make it easier. Though we really do need long shots as well.
', u'post_id': 4195, u'date': u'2017-02-28 11:51:03'}, {u'user_id': 4, u'title': u'Interesting', u'comment_id': 23095, u'content': u'That page seems to be a sort of fairly abstract description of what any project ought to look like. Its categories are very abstract: "Create spaces", "Map interests", "Create structure" etc. Each comes with deadline and deliverables. Each person running a project would fill in these fields as appropriate \u2013 in fact, quite similarly to what happens with European Commission-funded project (they have "Excellence", "Impact" etc.). Also the process people have used in the periscope case is similar: work on a GoogleDoc, then copy-paste into the Sensorica form. The point of copy-pasting seems to give people a way in to contribute (and be rewarded accordingly \u2013 kind of like Github + accounting). This is all reverse engineering, I am not actually seeing the accounting (no fields denominated in \u20ac or $ or whatever), but that might be due to my non-logged in status.
\n\nWe have a similar system, except no forms. You have a project, you post it as a group on the platform and receive your basic tools for cooperation (wikis, tasks etc.), loosely coupled with what the whole community is doing. This is meant to maximize the chance that somebody you don\'t know will randomly walk in and turn out to be exactly the person needed for that project. People are encouraged to find their own ay to share, under Who Does The Work Calls The Shots \u2013 doers decide.
\n\nA problem in ER is turning out to be how to reward the quite difficult and not always fun activity of making the sales. Not rewarding encourages waiting around for someone to walk in with a contract; rewarding it seems quite awkward, at least before you have some hard data on what it costs to do that kind of work (accounting for all the failed pitches). How do you guys do it in Sensorica? Does your accounting award a commission to people making successful sales? How much, if I may ask?
', u'post_id': 4195, u'date': u'2015-03-09 09:00:07'}, {u'user_id': 8, u'title': u'Hey :)', u'comment_id': 21736, u'content': u"So I followed your link and couldn't really make sense of what the contents of that page want from me as a visitor. Are you trying to sell me something? Am I expected to post something somewhere?
\n\nWe are looking at the same problem from different angles. I saw there was a need to put together an overview of how you actually generate revenue because for a lot of people it is kind of a black box. Then you can plug those skillsets into different contexts that operate under different rules. Your Open Value Networks Concept in my mind is one such context: I am looking at all the stuff that happens before a customer arrived at your door stating they want to contract you to do x thing for y amount of money.
\n\nThe background story is that I had a meal with an Italian civil servant who has become friends with three homeless-ish guys in Milan. One of the guys is an Italian aristocrat who spent all his money. The second is a skilled Senegalese metal worker who lost his job as a factory worker. The third is a Maroccan guy who lives out of his car, and is not really specialised in any area.
\n\nGuess which of the three is doing best?
", u'post_id': 4195, u'date': u'2015-03-07 08:21:00'}, {u'user_id': 514, u'title': u'Collaborative ways of generating revenue', u'comment_id': 19801, u'content': u'Hi all,\xa0
\n\nI got captivated by this thread, because this is precisely what we are trying to do at SENSORICA.\xa0
\n\n@Nadia "I am looking at collaborative ways of generating revenue\xa0for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It\'s tricky.\xa0"
\n\nFirst, what is the value system? We need to map it first and that will determine how to set everything up for value to be created, distributed and for the benefits to be shared among participants. Second, there is a choice to be made about the type of environment we want to create. Is it about creating value in a corporate-type environment or in a peer production environment. Nadia\'s words above suggest that something like the second choice is preferred. People like us need to be free, want to contribute to different projects, want to be able to influence and take ownership of processes, want to share... So how do you set up an environment that allows value creation and its distribution but feels like a network and is build on openness, transparency, decentralized processes? This question is at the core of my activities since 2008 and my answer is the Open Value Network (OVN) model. There are a lot of hybrid models that try to go in that direction but preserve some of the old stuff, and I think that is because people are not ready or can\'t go all the way. Within SENSORICA \xa0all projects are open, everyone can perform tasks, no barrier to value creation, and we use the value accounting system to redistribute the revenue. Networks that have projects formalized as a company, incubators and accelerators for example, don\'t have a lot of co-creation or exchanges between these entities. Within a value network projects are open and are only loosely formalized. If you have a system to track contributions you\'ll get a lot of value flows between projects, synergy increases, there is a lot of recycling and sharing of tangible and intangible resources. \xa0
\n\nWe are now prototyping services. A client makes a request, a group forms within the network and use the infrastructure to deliver. Here\'s one example\xa0
\n\n\n', u'post_id': 4195, u'date': u'2015-03-06 22:54:53'}, {u'user_id': 8, u'title': u'Sure', u'comment_id': 18595, u'content': u"Let's build the tasks for people to complete together? When should we schedule the first group call for, next thursday morning work for you?
", u'post_id': 4195, u'date': u'2015-03-06 18:52:09'}, {u'user_id': 1679, u'title': u'Would be thrilled to help out', u'comment_id': 18163, u'content': u"Yes, I completely agree with the remix.
\n\nI looked at the way the course is going to be structured. This is indeed great, I like very much the idea of peer-to-peer feedback, and of weekly calls to state the advancements. We were doing this with the crowdmentoring programm that we organized with Babele in October, and it really works :-).
\n\nMy remark regarding the course is that this is great for ideas that were not implemented yet, but it would be fantastic to adapt them to already existing ideas. For example if they already have an MVO, they would still need to figure out if they satisfy needs and if somebody is ready to pay for their service because it's creating value, but the focus, the questions, etc, would be different. What do you think?\xa0
", u'post_id': 4195, u'date': u'2015-03-06 16:08:58'}, {u'user_id': 8, u'title': u'Yes I think we need to remix what is out there to work for us', u'comment_id': 16967, u'content': u'I am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It\'s tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here\'s where the course is being shaped, feel free to jump right in:\xa0https://edgeryders.eu/en/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course
', u'post_id': 4195, u'date': u'2015-03-06 09:11:12'}, {u'user_id': 1679, u'title': u'The lean startup methodology :-)', u'comment_id': 16291, u'content': u"Hi Nadia,
\n\nyes, great post. What you are saying actually is indeed the fact that there needs to be value creation for social purpose driven initiatives.
\n\nFor it to be value driven, there need to be people that are ready to pay for the service.
\n\nThe whole concept of testing with a Minimum viable product (MVP) or Minimum viable Offer (MVO) it's the ideas behind the lean startup philosophy.
\n\nTest something from users, learn how to identify their needs (because they do not always express them directly) and how to create something that satisfies their needs creating enough value for them to really use your product/service. Etc.
\n\nI believe there is much to learn from the whole lean startup philosophy for people that want to change the way our world is driven. This is why we were organizing workshops on lean startup and collaborative business modeling (as the one organized in Stockholm). However, there are also limits of the lean startup principles. For example with Babele, we received the true validation of the concept only in October 2014, so 1 year and 2 months after having launched the platform. And we started selling services with the platform only in February 2015 (so 1 year and almost 6 months after). It takes a lot of patience in building professional products and services, and sometimes the lean startup philosophy invites people to give up too soon because they were not able to receive proper validation soon enough...
", u'post_id': 4195, u'date': u'2015-03-03 13:48:03'}, {u'user_id': 8, u'title': u'Ok so it seems there is an interest', u'comment_id': 11825, u'content': u'I have resisted doing this for a while out of time constraints, but it kept popping up as a need. A few minutes after this post went live I started getting emails from people who want to sign up for the course. Perhaps I should have set this up earlier, but as always...time time time.
', u'post_id': 4195, u'date': u'2015-03-03 13:26:44'}, {u'user_id': 3, u'title': u'Recommended', u'comment_id': 9660, u'content': u'What can I say, having learned quite a bit just by watching you work your magic
@Ruxandra\xa0wouldn\'t this be useful to your Babele team?
', u'post_id': 4195, u'date': u'2015-03-03 11:06:44'}, {u'user_id': 4, u'title': u'Thanks!', u'comment_id': 31734, u'content': u'Thank you @Jonathan_Sundqvist . How are you anyway?
', u'post_id': 6168, u'date': u'2017-03-10 13:37:19'}, {u'user_id': 34, u'title': u"How it's been done before", u'comment_id': 31638, u'content': u'There are quite a few property crowdfunding \'platforms\' in the UK. Though they solely focus on financial gain.\xa0But perhaps there is still something that can be learnt from them?
\n\nhttps://www.crowdwithus.london/
\n\n\n\n\n\nhttps://www.propertypartner.co/
\n\n\n\nAlso this is a rather interesting article on the topic:\xa0https://www.ft.com/content/bff453da-be7d-11e4-a341-00144feab7de
', u'post_id': 6168, u'date': u'2017-03-08 17:40:31'}, {u'user_id': 8, u'title': u'Next Step: Building the Crowdfunding campaign', u'comment_id': 31285, u'content': u'Hey guys thanks for a really interesting discussion. In today\'s Community Call\xa0we look at what the suggestions about mean in practice.
\n\nIf you cannot make it in person don\'t worry, we\'ll put up the documentation from the call and continue from there.
', u'post_id': 6168, u'date': u'2017-03-02 13:48:20'}, {u'user_id': 4, u'title': u'What a beautiful thread!', u'comment_id': 30790, u'content': u'You guys seriously rock. Especially @johncoate - the depth and robustness\xa0of his experience is invaluable. It would take me 10 more years to figure out this stuff on my own.
', u'post_id': 6168, u'date': u'2017-03-02 00:05:00'}, {u'user_id': 2915, u'title': u'From online to offline', u'comment_id': 30470, u'content': u'>do you think having already a culture of "who does the work calls the shots.." or a doocracy\xa0pretty well instated in our online >community should help with the community management points?
\n\nYes I definitely do. \xa0You have already been through a lot together and you have refined your thinking along the way.
', u'post_id': 6168, u'date': u'2017-03-04 01:04:27'}, {u'user_id': 3, u'title': u'What translates from the online culture? Hm.', u'comment_id': 30402, u'content': u'@johncoate I can only hope we are / will be worthy of this thoughtful advice.\xa0
\n\nReading you I would say some points come earlier than the rest (1,2,3,4,8), and thinking them through well in advance should avoid, at least in theory, the others.
\n\nA question, do you think having already a culture of "who does the work calls the shots.." or a doocracy\xa0pretty well instated in our online community should help with the community management points? I would suspect so. What makes it challenging is that at least some conditions typical of do-ocracy (or listed as favoring factors) are turned almost upside down in a physical communal space:
\n\nWorking to accommodate to higher stakes and more authority (presumably of the\xa0capital providers/ managers etc) already means stepping into a new space with rules different than those on an online playgroud. Which means acquiring new skills - beyond the physical skillset which for people like myself,\xa0sounds pretty scary I must say.\xa0Point 8 is indeed.. yikes.
', u'post_id': 6168, u'date': u'2017-03-02 23:18:09'}, {u'user_id': 2915, u'title': u'Parsing at the Crucible', u'comment_id': 30197, u'content': u'This is a big undertaking. \xa0An historic one for all personally involved so far. \xa0(I have some group experiences but were quite different in several important ways.)
\n\nThus the two-apartment place in Brussels does look to be a crucible for figuring out the larger plan, and also as Alex says, a place to stress-test things. \xa0A modeling workshop.
\n\nLiving in the country has many advantages. \xa0More land, fewer rules, more quiet privacy, possibly ways to sustain such as water source and arable land. \xa0But the disadvantages are strong too: fewer or less reliable services like broadband, sewage treatment, water and heat and ultimately health care, that thing you don\'t need until you do. \xa0It just isn\'t as good in the country overall. \xa0So, more freedom but corresponding self-reliance. \xa0That means being good at fixing things and having the time to do it. \xa0This will be compounded when you add people who won\'t see it as their responsibility to deal with certain problems as they arise, but they will expect to have water, heat and broadband.
\n\nFive years\xa0of my Farm days were\xa0spent in urban communal living in cities. \xa0Some of that time was doing that Bronx ambulance project but most of that time was in Washington DC. \xa0Usually 10-12 adults and a bunch of kids. \xa0We paid for it by having some of us do the work of our mission there (we were - and still are - a nonprofit that gives direct aid to needy people, often native people plenty.org) and some of us run a remodeling/carpentry business. \xa0The work of our mission was encompassing enough that all of us living there took part in and gained the experiential benefits of participation (events with native Americans, managing a big no nukes rally and concert, etc), but for us remodelers, the\xa0work day was all about fixing up houses in DC just like the one we stayed in last September. \xa0That got everything paid for and it also meant we had the tools and the ability to deal with the household stuff\xa0that broke. \xa0Because I was more of a mechanic than a carpenter, I maintained our small fleet of vehicles as well as the washer/dryer and other appliances plus the household electricity and plumbing. \xa0Believe me, all of it goes wrong at some point and if you can\'t fix it yourself it either falls apart or you pay a lot for someone else to do it. \xa0What I am saying is that this kind of thing compounds in group situations. \xa0But I say, accept it and treat it as an opportunity for self-sufficiency. \xa0Care starts at home.
\n\nAs for parsing those things, some of it is pretty obvious, but here goes a stab at it.
\n\nCapital constraints: Obvious to all. \xa0Money. \xa0Groups can economize to almost unimaginable amounts (like at Findhorn and The Farm), but it also means there are all sorts of things you can\'t do.
Burn-out: just like with any office refrigerator and dishes, some people are neater than others and some people care more than others about certain daily realities of the physical space and on to completely mental/psychological/relationship issues. \xa0It is inevitable in any group that you will have a kind of bell curve of participation at the most basic levels of responsibility where some people take on anything and everything, most people do some, and some people don\'t do that much. \xa0This is one of the most important reasons why certain things have to be worked out and talked through. \xa0Putting a bunch of signs around and just being rule-enforcers might work when the large majority of people there are transient, but for a smaller more committed group, it can take on\xa0a life of its own that can get to be a drag. \xa0Plus, it wasn\'t said in that article, many of the intentional communities or collectives, are started by people in their younger adult years. \xa0Sometimes the real story is people grow and change and their life goals shift.
Conflict over private property and resource management: related to burnout and capital restraints. \xa0This is a situaltion where I think it ought to get written down as to what the basic agreements are about who owns what and who is responsible for what. \xa0Not getting this right is dangerous. \xa0But that is what the crucible and planning is all about. \xa0Many ways to go on this, with pros and cons at every turn.
Poor systems of conflict mediation: One of the best quotes in that article was, "\u2018It\u2019s not utopia. It\u2019s microcosm. Everything that\u2019s in the outer world is there \u2013 marginalisation, addiction, poverty, sexual issues, power. Communities are just fractals of society.\u2019 The difference for Sutherland was that in Findhorn there was good will and a clear commitment to waking up: \u2018People are willing to look at their stuff.\u2019
"People are willing to look at their stuff." \xa0No matter how you say it, get this working and you can go on and on. \xa0Avoid it, and, well, vaya con dios..bad vibes await you.
\n\nFactionalism: Inevitable perhaps to some degree, but can and should be diffused with regular\xa0open and honest talk about it. \xa0Requires total fidelity to truth, even if the truth is somene admitting that they are conveying an impression and not facts per se. \xa0The thing is, frank talk should not get put off too long or too often so that bringing up anything turns into some huge blowout deal.
Founder problems: leaders and founders don\'t easily relinquish. \xa0Every situation is different. \xa0In a "does the work/calls the shots" environment this won\'t present itself as a huge problem as long as everyone understands and agrees on\xa0the meaning of the word\xa0"work" and what work has what relative value.
Reputation management: can be a problem as an attractor of new people. \xa0One of the agreements of the operation should be "don\'t be an asshole" plus make sure the plumbing works and the reputation ought to take care of itself.
Skills shortage: this has been discussed already in terms of having a variety of people clustered who know how to synergize what they know. \xa0But if you go out to the country, this will become a big deal right away. \xa0Unless you want to spend your time learning country skills. \xa0But in the city the skill sets are going to be more focused on the ER mission as it plays out now, right? \xa0Grant writing, business management, event planning, workshop managing, etc.
Failure to attract new talent or entice subsequent generations: not a near term issue at all. \xa0But one problem with groups is they can get pretty smug and insular. \xa0That\'s not attractive.
Noemi said get a business plan. \xa0I say yes, at least write down a realistic profit/loss and cash flow sheet. \xa0One of the best pieces of advice I got when preparing budgets was not to sugar coat the revenue projections but be as dead honest as possible.
\n\nAnyway, that\'s a quick sketch. \xa0Speaking of skills, I need to go now and look at my son\'s leaking water heater at a house he just bought nearby. \xa0I still have a good tookbox.
', u'post_id': 6168, u'date': u'2017-03-01 20:19:00'}, {u'user_id': 2569, u'title': u'A Balance', u'comment_id': 29770, u'content': u"In many ways i agree with Natalia. A rural, larger space is probably more interesting and holds more potential for growth and development of the project in the medium to long term. This would certainly need to be purchased land (or at least very long leasehold)
\n\nI also forsee that it will remain beneficial to hold a place in at least one major city, for no other reason than it serves as a pysical 'shop window' for the organisation and the work we're doing. It also give the curious a space to engage with us in a way that it undemanding on resources,time and steps into the unknown (important if we want to bring in new ideas and voices). I could foresee this space being an incubator for the fellowships and residencies program, and a small way of bringing business and professional engagement with the organisation.
\n\nMy gut feeling is that in the short term a city based rented space could help stress test certain areas of the project and act as a crucible for designing larger idea. Funds must be raised, permissions saught and connections and partnerships with local communities formed. The 'where?' of a city is much less important than the 'where?' of a larger settlement.
", u'post_id': 6168, u'date': u'2017-03-01 12:54:42'}, {u'user_id': 3, u'title': u'The scary thing freedom is', u'comment_id': 29669, u'content': u'Wow you summed it all up Natalia, and even offered a quick plan
I think where we all seem to agree so far is these three types of membership (Nadia\'s\xa0terminology)/ offer: a mix of (I would say affordable) super cheap or free accommodations\xa0for people who work on things (fellowships, residencies), residential spaces for those who want to invest long term in it where we also cover the costs, and a business model - high-quality rooms we could rent short term, but also services.\xa0
\n\nIt is at the business model where we seem to get stuck.
\n\nI think we are going to need some more time to figure out the purchasing vs renting dilemma, and the home space in Bxl now buys us that time.
', u'post_id': 6168, u'date': u'2017-03-01 12:14:41'}, {u'user_id': 137, u'title': u'I think we are looking here at a ', u'comment_id': 29388, u'content': u"I think we are looking here at a much more complex space, along with models of financing.
\n\nFirst of all, it would be great to clarify what type of space do we open for LOTE - do we try to buy something and use the event for barn raising (at the same time skipping bargaining with host cities - the more independence we have, the better), or do we want to have a space in Brussels, ready to use as Nadia and Alberto live there already? Or both?
\n\nFor me buying a land and a farm sounds most interesting - because of the costs, because of the location (out of the city, obviously well connected, but also in an underprivileged, a maybe slightly abandoned area that would use a community and an investment) and access to farming land. I was looking lately into offers in Portugal, and discussing it with one of my friends, and it's easy to find something rather cheaply - for 40, 70, 100.000 euros for a big piece of land there. Portugal is well connected by highways and has relatively many airports around. For me living in a big city in Europe is not that interesting anymore anyway:)
\n\nAbout the model, it will greatly depend on the space - and vice versa. I would see it as a mix of super cheap or free accommodations\xa0for people who work on things (fellowships, residencies), residential spaces for those who want to invest long term in it where we also cover the costs, and a business model - high-quality rooms we could rent short term, but also services. If we manage to build a community where various practices of care are available, this could be a source of revenue. We could start offering training for companies in well-being. Or open a section for a couple of elderly people, paid, but affordable.\xa0
\n\nThese ideas could build up into a de facto village we would be running there.\xa0
\n\nThe village could be at least partly financed by the crowdfunding campaign, but once we have this sorted, we should submit the very same plan to Velo foundation in Denmark that offers support in purchasing real estate for organizations. And if we connect LOTE with this land purchase, we can actually, once in a lifetime, offer a chance to buy tickets for the event with the intention that the money from the tickets (and merchandise) goes to renovation and so on. It won't be compulsory - it would be a voluntary donation, and I think many would find it reasonable.\xa0
\n\nI am only worried about the timeframe. Can we really buy a space within a couple of months? I know that Nadia is planning to go scouting, while I am preparing a list of places where there are interesting lands and farms. Or the Brussels space has to be the first step, and we will look into the purchase sometime later, once we see what works there?
", u'post_id': 6168, u'date': u'2017-03-01 07:29:04'}, {u'user_id': 3, u'title': u'How would we parse it?', u'comment_id': 28640, u'content': u'@johncoate even if we can weight them, how would you do it beyond the value level..?\xa0
\n\nI feel like we either need a business development\xa0expert around here or at least map an actual space onto all of these. Spaces come with their own stories and tangible challenges.. the rest seems too abstract given that - after this call it\'s become more clear that we can\'t model our own concept concretely\xa0on any of the examples mentioned above (FOAM, Impact Hub etc).
', u'post_id': 6168, u'date': u'2017-03-01 12:24:03'}, {u'user_id': 2915, u'title': u'About that article..', u'comment_id': 28256, u'content': u'an initial reaction is to take this sentence\xa0and suggest we parse it out \xa0and know where we are with each one, because it\'s pretty all-inclusive. \xa0I don\'t necessarily weight them the same, by the way. \xa0For example, "poor systems of conflict management" weighs in pretty heavily in my own analysis. \xa0In the patois of the Farm days, not having that means the vibes will "silt up with subconscious" (which can be taken to mean unstated thoughts and feelings that have an effect on the conscious mind, even if it isn\'t clear.)
\n\nAnyway, here is that sentence:
\n\n"But the more relevant drivers that cause many communities to unravel sound more like the challenges afflicting any organisation today: capital constraints, burn-out, conflict over private property and resource management, poor systems of conflict mediation, factionalism, founder problems, reputation management, skills shortage, and failure to attract new talent or entice subsequent generations."
', u'post_id': 6168, u'date': u'2017-02-28 19:09:00'}, {u'user_id': 2915, u'title': u'well said', u'comment_id': 27731, u'content': u'good advice there.
', u'post_id': 6168, u'date': u'2017-03-01 20:50:01'}, {u'user_id': 3362, u'title': u'Takeaway from article', u'comment_id': 27693, u'content': u'An interesting takeaway from the article for me is what is mentioned in the piece on Damanhur: "600 full-time citizens, primarily organised into small \u2018nucleos\u2019, or makeshift families, numbering 15-20.". Large groups broken down in smaller ones to increase effectiveness.
\n\nIt reminded me of the important relationship\xa0between diversity and scale. Each context & group has their\xa0own correlation between diversity and scale, and each situation thus has its own sweet spot(s). Small groups tend to lack diversity, yet they are likely to be efficient\xa0at the few things they do. Large groups tend to follow the opposite rule. Too much diversity in both cases loses functionality. Not enough leads to inbreeding of ideas.
\n\nMaybe this has been said already, but I wanted to share it anyway. Your hurdle seems to be very pragmatic, rent and business model, and you\'re looking to start at\xa0a relatively small scale. So I think it might be a good idea to reduce diversity at the start. In other words it might be better to start with people who agree on one business model and leave the door open for diversity as context changes, size grows, opportunities arise. Lean methodology wise.
\n\nThe potential extra cost of starting in a lean and not-so-diverse way, the potential deficit,\xa0could be considered an investment in all the lessons that you will learn from starting this way. You\xa0could structure this investment as a mortgage or loan to\xa0future users.\xa0They\xa0will be benefiting in hard cash when the model with lots of diversity is ultimately in place, as this model\xa0should be more resilient, economically viable and able to offer lower prices on multiple fronts. It seems natural that dues are paid for what it is built upon. Support from the future community. In financial terms, it would be a relatively standard loan I suppose, though I don\'t know how realistic it is for you to get one.
', u'post_id': 6168, u'date': u'2017-03-01 13:07:09'}, {u'user_id': 2551, u'title': u'Need to think about this a little.', u'comment_id': 27221, u'content': u'In the meantime, here is a talk by "the Airbnb guy" that I am halfway into. Perhaps useful in this context?
\n\nThat guy probably has a bunch of leads via his twitter.
\n\n', u'post_id': 6168, u'date': u'2017-02-28 17:50:45'}, {u'user_id': 8, u'title': u'Community Call #1: Defining the Offer', u'comment_id': 26660, u'content': u'This is my summary of what we discussed today.
\n\nCoworking spaces are generally not financially viable by themselves. Their costs are covered by revenue from other sources, they serve as a differentiator when peoplem have choices between two similar options.In order of scalability:
\n\nThoughts @noemi @maria @natalia_skoczylas @yannick @alex_levene @matthias @johncoate @alberto @trythis?
', u'post_id': 6168, u'date': u'2017-02-28 17:28:44'}, {u'user_id': 2201, u'title': u'My 2 cents', u'comment_id': 23450, u'content': u'Here are my reflections @Noemi
', u'post_id': 6168, u'date': u'2017-02-28 12:30:31'}, {u'user_id': 137, u'title': u'sorry @Nadia and @Noemi, \xa0there was 5 hours ', u'comment_id': 19742, u'content': u'sorry @Nadia and @Noemi, \xa0there was 5 hours long superstorm here when you had a call and no internet whatsoever. I will be there on Thursday for sure
', u'post_id': 6168, u'date': u'2017-02-28 12:24:08'}, {u'user_id': 3, u'title': u'My notes from the call', u'comment_id': 14086, u'content': u'Over the past weeks we are seeing\xa0an opportunity to start a\xa0pre-Reef stage - an Edgeryders physical space -\xa0in Brussels. We are going to test it this year where Nadia and Alberto currently live (200 sq m space).
\n\nThe question we talked around was:\xa0What is a good membership offer and one that is financially fair?
\n\nSome models we went through:
\n\nImportant distinctions:
\n\nAll of the above are for profit businesses, unlike edgeryders..\xa0
\n\nBuying vs. Rental model: in the longer run we want to own our assets
\n\nOne-off costs vs. Running costs: one-off costs are easy to crowdfund for in our network; we\'d need to break the benefits into benefits for being a shareholder, in return for\xa0helping create the space\xa0and benefits in using the space, for contributing to the running costs.
\n\nPersonal thoughts: obviously in between the high end market of the Impact Hub and other highly urban cowork models or small informal places ran by friends (we\'ve seen mostly failing attempts everywhere) Edgeryders is positioned in between. We definitely need:
\n\n1) people\xa0paying with money in order to meet the\xa0end of the month costs and run it sustainably, but also
\n\n2) keep the door open for the severely underfunded people and projects who are aligned in vision, and who could pay in kind.\xa0
\n\nThe offer to these two types of "participants" are different imho. For the first - costs are covered by permanent residents + membership fees and services (! this is where the beef in the thinking is). For the second - costs are covered mostly on a shorter basis, more flexible and\xa0in kind. But for the sake of sustainability the emphasis should fall on the first, at least in the short term.\xa0
\n\n@Maria and @Iriedawta I\'m looking forward to read your impressions after the call. What should we not miss? What would your expectations from such a space be and what do you see yourselves\xa0contributing in exchange, say\xa0on a regular basis? Thanks!
', u'post_id': 6168, u'date': u'2017-02-28 12:16:00'}, {u'user_id': 2569, u'title': u'Unavailable for the calls thia week, but i ', u'comment_id': 6523, u'content': u"Unavailable for the calls thia week, but i get my life back after the 5th March and i'd love to spend some time working on this stuff with you.
\n\nCan happily volunteer my time for the Tuesday or Thursday that week (6th/8th)
", u'post_id': 6168, u'date': u'2017-02-27 19:45:31'}, {u'user_id': 3, u'title': u'Looking good.', u'comment_id': 8183, u'content': u'\n\nWe should be signaling that the majority of OpenVillage visuals will be community produced materials and not necessarily official ones. I\'ve added two lines saying this.
', u'post_id': 6182, u'date': u'2017-03-07 07:45:27'}, {u'user_id': 4, u'title': u'For sure! But... ', u'comment_id': 17400, u'content': u'@Francesco_Maria_ZAVA , @Rune : of course the network iof spaces is the ideal scenario. But here is the thing: we are worried of going onto\xa0three-year project to try and rally the manpower and the money to do something big and ambitious. We would like to do what we did with Edgeryders itself: a kind of minimum barely viable product, that we can deploy here and now, with resources already available.\xa0
\n\nBut there is no contrast, because the prototype today actually increses the probability that a newtowk will exist tomorrow.\xa0
', u'post_id': 6097, u'date': u'2017-03-06 21:54:04'}, {u'user_id': 3331, u'title': u'Excellent idea', u'comment_id': 14992, u'content': u'It\'s good to see that things are moving forward. Definatly an excellent idea and thank you @Francesco Maria ZAVA\xa0for the link. I do not know if a single site is the best solution. Working hands-on like it\'s the intent of WeHandU (@Alexander_Shumsky ) requires local community as well, (therefore I vote Milan @Rossana_Torri, @Costantino ), but it depends on what the focus is. Maybe a distributed network of hubs would be a good solution.\xa0
', u'post_id': 6097, u'date': u'2017-03-06 14:21:05'}, {u'user_id': 3185, u'title': u"Eccomi!\n\nCiao a Tutti\n\nL'idea di una struttura residenziale con ", u'comment_id': 7824, u'content': u'Eccomi!
\n\nCiao a Tutti
\n\nL\'idea di una struttura residenziale con caratteristiche polifunzionali per il co-lavoro e la co-formazione \xe8 assolutamente interessante, anche se nell\'ambito della disabilit\xe0 questo \xe8 infatti stato sperimentato qualche anno fa (residenza integrata al territorio) purtroppo con esiti non propriamente lusinghieri. Tuttavia credo che il suggerimento offerto dall\'iniziativa Roam possa essere ampiamente colto e semmai declinato per una \u201cclientela\u201d decisamente meno hipster e \u201cgiovanilista\u201d ma pi\xf9 \u201cesigente\u201d per quanto concerne lo spettro e la qualit\xe0 dei servizi che una soluzione come quella proposta dovrebbe garantire.
\n\nL\'idea che ho in mente in questo momento \xe8 quella di uno spazio polifunzionale altamente \u201criprogrammabile\u201d a seconda delle necessit\xe0 contingenti all\'interno del quale, comunque, debbano essere previsti spazi di laboratorio \u201cvivente\u201d, aree di condivisione delle risorse strumentali (connessioni, piattaforma social con sistemi di co-design e di co-progettazione, archiviazione multimediale, ecc.) per agevolare il pi\xf9 possibile i momenti di lavoro comune e rendere oltremodo \u201cnaturale\u201d l\'esecuzione di tutte le varie attivit\xe0 di creativit\xe0 e di collaborazione che prendono vita e senso in un contesto informale, aree dedicate alla \u201ccura\u201d di s\xe9 e dell\'altro, aree deputate alla relazione con il tessuto connettivo sociale (sensibilizzazione, eventi e formazione), senza naturalmente trascurare una serie di attenzioni in termini di design for all considerando infatti che le persone potenzialmente interessate a questa opportunit\xe0 possono necessitare di soluzioni altamente preconfigurabili che possano incidere complessivamente sul tasso di qualit\xe0 in termini di accoglienza e di soggiorno lavorativo.
\n\nPer quanto riguarda gli aspetti pi\xf9 \u201cistituzionali\u201d credo sia opportuno coadiuvare Edgeryders con una serie di innesti - nella fase progettuale e di operativit\xe0 \u2013 provenienti sia dal pubblico, per quanto sia possibile date le ristrettezze economico finanziarie che ne limitano fortemente l\'orizzonte strategico, sia sopratutto dal privato. Mi piace infatti immaginare che un progetto di alta innovazione sociale come questo, oltre ad incontrare il favore della pubblica amministrazione, possa in qualche modo stimolare l\'interesse del mondo della ricerca (universit\xe0 ed aziende), della finanza etica e dell\'economia solidale oltre che coagulare diversi attori del terzo settore o, pi\xf9 in generale, del no profit indirizzate a questo punto ad una azione di sinergia che possa contribuire \u201cdal basso\u201d al ridisegno di uno stato sociale oggetto di una profonda trasformazione.
\n\nMi auguro che Bruxelles possa costituire un valido banco di prova come Milano possa divenire un secondo nodo di quello che potrebbe divenire un network all\'interno del quale elaborare e trasferire nel concreto il pensiero, l\'approccio ed il consolidamento di OpenCare.
\n\nPersonalmente, insieme ad altre persone, sto riflettendo e lavorando a WeHandU, una iniziativa volta a supportare le persone nel processo di superamento della loro difficolt\xe0 quotidiana attraverso la realizzazione di una soluzione ottimale per loro stesse e magari per qualcun altro (al momento si pensa al recupero della funzionalit\xe0 della mano e del piede per i soggetti affetti da ictus, sla o lesioni traumatiche), in qualche modo cercando di creare un ambiente di progettazione, lavoro e condivisione della conoscenza che si traduce certamente in uno spazio di co-working e di living lab. Tuttavia questo non esclude, n\xe9 tanto meno preclude, la possibilit\xe0 che tale idea possa evolvere ed articolare in funzione di una maggiore ampiezza delle soluzioni co-progettate quanto piuttosto di una reale apertura a livello transnazionale europeo comportando la strutturazione di spazi e momenti che ne condividano il respiro, le finalit\xe0 e gli obiettivi. Al momento quanto esposto \xe8 infatti oggetto di riflessione tra i membri di WeHandU, per quanto attiene le finalit\xe0 e le possibilit\xe0 realizzative dell\'iniziativa a partire dalla localizzazione delle operativit\xe0 previste (makerspace), ed argomento di informale conversazione telematica tra me, Alberto, Rune ed Alexander. Credo per\xf2 che una maggiore connessione a questa iniziativa possa scongiurare una dispersione di energie e di opportunit\xe0 e che, nelle varie fasi evolutive, possa al contrario essere foriera di risultati importanti.
\n\nCome al solito sono stato lungo e verboso\u2026 Scusatemi!
\n\nPS: Aggiungo solamente questa risorsa, che contiene un video in italiano e la trascrizione in italiano ed in inglese, per illustrare la capacit\xe0 e la potenzialit\xe0 della Citt\xe0 Metropolitana Milanese di essere sociale, inclusiva ed innovativa nello stesso tempo:
\n\nhttp://www.report.rai.it/dl/Report/puntata/ContentItem-c2b6ce4c-69c2-464b-8179-9cb3f692a64f.html.
\n\nMilano pu\xe0 senza alcun problema costituire un terreno fertile per un progetto importante come"The Reef"!
', u'post_id': 6097, u'date': u'2017-03-05 18:26:23'}, {u'user_id': 137, u'title': u'During the second call last week, we discussed ', u'comment_id': 7962, u'content': u"During the second call last week, we discussed with Nadia two main questions:
\n\nwhat will be the money be dedicated to and why lote6 is a great opportunity for us to fundraise. While the conference itself is already financed in big part, and what remains to make it happen is a lot of work on our side in preparing both the program, the logistics and the exhibition, it will be used as a fundraising engine to crowdfund a permanent space for the edgeryders' community. All kinds of contributions, from in-kind donations of goods and time, to financial support and long-term involvement in sharing the costs and the work required to keep the space up and running, can be collected from the members, who come to our event free of charge anyway.\xa0
We make a list of perks and rewards for contributors to the online campaign - if you have an idea, would like to contribute something (a massage, a special session, a language lesson, a tarot reading we could offer as an award - write it down in the comment, so we can collect all the ideas and include them in the list of rewards).\xa0
You even mentioned me! I need to train my eyes better when skimming all those headers. @Matt maybe it would help if the routine messages have a clearly different header e.g.:
\n\nMENTION [by Winnie] on [XY] Edgeryders
Digest of Edgeryders activity [X-Y]
New comment (keep as is)
@WinniePoncelet for the local coordination I am a huge fan of audio recordings. Especially if the group is not huge, but maybe not everyone is on the same page, or arrives later - it is great to catch up, or look up things you didn\'t get the first time around.
\n\nAlso if you eventually want to share parts with another group it gets much easier. Either by writing a (late) summary or (if in English) just pushing part of the convo to them. One nice thing is that a written summary posted will probably have a high fraction of the key terms that are relevant for ethnographic analysis.
', u'post_id': 552, u'date': u'2017-02-28 15:31:27'}, {u'user_id': 3362, u'title': u'Good', u'comment_id': 25694, u'content': u'@Alberto\xa0@Noemi Great! All 3 dates work for me:
\n\n23 afternoon/evening
\n\n24 evening
\n\n25 anytime
', u'post_id': 552, u'date': u'2017-02-15 16:09:06'}, {u'user_id': 3, u'title': u'Only next week', u'comment_id': 25685, u'content': u'I can only do Feb 23, 23 or 25. @WinniePoncelet ?
', u'post_id': 552, u'date': u'2017-02-15 10:59:00'}, {u'user_id': 4, u'title': u'Yes! ', u'comment_id': 25673, u'content': u'Let\'s totally have a call, @WinniePoncelet and @Noemi . Also calling @Ezio_Manzini . Best dates for me are Tuesday and Wednesday 14/15 Feb.\xa0
', u'post_id': 552, u'date': u'2017-02-13 18:06:02'}, {u'user_id': 3, u'title': u"Guys you're really going for this, wow.\n\nIn addition ", u'comment_id': 25463, u'content': u"Guys you're really going for this, wow.
\n\nIn addition to possible support from OpenCare\xa0(for which we are just now drafting terms with Marco)\xa0you might want to look into a uni partner that would be willing to assign students to work for it and make it part of a semester assignment, that should really help kickstart. \xa0Of course, this may be too advanced stuff for coursework, I have no idea.\xa0
\n\nWhat's a good timeline? Is it reasonable to expect advances in 6 months? They can\xa0be, if not research results, community mobilization results, contributing to global documentation and similar things. Well done!
", u'post_id': 552, u'date': u'2017-02-09 20:08:52'}, {u'user_id': 3362, u'title': u'Main challenges', u'comment_id': 25366, u'content': u'I\'m also fascinated to see if/how we can make this work. Testing something like this is right up there with the things we absolutely wanted to try out when setting up our lab. Some initial thoughts, I may be off.
\n\nIn my view, there\'s two clear levels to this: local collaboration and international collaboration. Both are interesting to research seperately, and the combination even more so.\xa0For good measure, local research groups participating in this are (or should be)\xa0inevitably autonomous in practical aspects. Save the occasional shipping of a sample to replicate experiments\xa0or other small stuff like that. This entails that the local element\xa0will have coordination costs in the form of time, money\xa0and energy\xa0to\xa0keep\xa0the community and project going through a potentially long and tough research track.
\n\nThe big advantage is that all global groups\xa0are interconnected for the information aspect. The international element\xa0will probably happen relatively smoothly if the right digital infrastructure and practises are in place, as there is a clear incentive to do so: faster learning, collective intelligence. Coordination costs should be low, there\'s only information being shared and this is cheap and fast if you have people who keep track of data.
\n\nI\'m optimistic about the uptake of the project by the community here. The main challenge\xa0that I see now for us is the\xa0local coordination cost\xa0(Ghent or Belgium level TBD).\xa0I\'ve (tried to) set up, participated in and observed a few similar\xa0local research collaborations. They all had high coordination costs. This\xa0insight comes from\xa0scientific fields that are way less of a pain than biotech/pharma, so I can\'t see it turning out\xa0easier than expected. Another challenge is\xa0gathering relevant insights in terms of process to have some insights at the end of the road. More so when you haven\'t set it up right at the beginning: having to change process during the project is costly.
\n\nFor Open Insulin in SF locally it seems\xa0to have turned out well and I already discussed some potential pitfalls with @dfko. This is very hopeful.
\n\nAs for international collaboration, there\'s already some stuff in place: filesharing and weekly Skype calls. With the Sydney group recently started there is already a clear synergy.
\n\nI think we should have a call about how we can make it happen, @Alberto and anyone else?
', u'post_id': 552, u'date': u'2017-02-09 18:43:14'}, {u'user_id': 4, u'title': u'Collaboration: can we help?', u'comment_id': 24889, u'content': u'@WinniePoncelet and @dfko , this is really great news! I\'m sorry to have missed it, but the important thing is that it worked for you.\xa0
\n\nI was thinking. We (Edgeryders too, but OpenCare in specific)\xa0would be really interested in seeing this collaboration unfold. We would like to help, if we can. If our next batch of fellowships are in the pipeline, we could even support you.\xa0@markomanka , what do you think?
\n\nI guess the main question is this: what is the main collaboration challenge that you are facing? Is it the launch of a Belgian chapter of Open Insulin, and specifically the uptake of the ReaGhent community of the project? And: who is going to lead on this? Is it going to be you, Winnie?
\n\nAlso ping @Noemi | @Ezio_Manzini | @Federico_Monaco
', u'post_id': 552, u'date': u'2017-02-08 22:51:12'}, {u'user_id': 3362, u'title': u'Skype call', u'comment_id': 23778, u'content': u'@dfko and me ended up Skyping on Monday. It was kind of last minute after long silences and trying to find overlap in each of our hectic agendas. Sorry @trythis and @Alberto ! I\'ll try to give a short summary. We discussed that as I\'m more active on ER, I can serve as a link here.
\n\nThe project is still going well in technical terms. Only now, due to time and communication constraints, international collaboration seems possible. A\xa0local group in Sydney just launched a few weeks ago and already made good progress. Other groups are open to launch a local chapter.
\n\nWe\'ll be launching a chapter\xa0in Belgium to see if our community is up for joining this. Like that\xa0we will test the international collaboration and see where it leads us, perhaps others will join as well.
\n\nThere\'s a diversity of angles, eg. we could contribute more in terms of communication, while the others are more technically adept. It\'s\xa0interesting to me that each group can have their own approach, and all contributing to the same goal.
\n\nI\'m reaching out to the other labs in Belgium to see if they are up for joining. There\'s already a good diversity there (arts, technical, educational, ...).
\n\nDoes anyone have any ideas in terms of collaboration process? We\'re in a new field to set this up at such a scale.
', u'post_id': 552, u'date': u'2017-02-08 22:17:51'}, {u'user_id': 2551, u'title': u'Interested!', u'comment_id': 19886, u'content': u'I am more a engineer/scientist on the dead matter side of things - but I know just enough to understand that this is a pretty big thing.
\n\nIf you do skype with @WinniePoncelet I\'d love to be a fly on the wall and see if I can contribute in some way.
\n\nDo you know the question function of research gate? Insulin comes up with 385 researchers who follow the topic and 300 questions discussed. I often get good and detailed responses on things that you usually have a hard time finding in papers. Check here: https://www.researchgate.net/topic/insulin
', u'post_id': 552, u'date': u'2016-11-11 21:26:28'}, {u'user_id': 3362, u'title': u'Community support', u'comment_id': 14307, u'content': u'Hello @dfko! The Open Insulin project inspired my friends and me a lot, which ultimately led to starting ReaGent, a\xa0DIYbio space in Ghent, Belgium. We\'ve been going for about a\xa0year\xa0now.
\n\nI\'m sure there are more people with similar stories and who would love to help you\xa0- us included. Let me know if you want to skype sometime to discuss what we can contribute. Have you reached out or collaborated internationally before?
', u'post_id': 552, u'date': u'2016-11-11 13:45:33'}, {u'user_id': 3370, u'title': u'Thanks for the analysis Noemi. Grit is about ', u'comment_id': 11314, u'content': u"Thanks for the analysis Noemi. Grit is about all we've got right now! It's gotten us some results in the lab and gotten many people interested in helping out. And it has been key, in the preceding years, to founding the hacker space itself that we work out of.\xa0We've gone out on a limb and inspired some people and now we need to make the most of this interest. Influencing politics in favor of the values we're trying to serve is a side interest of most of the team and we're hoping in collaborating with Edgeryders here to be able to contribute to these broader questions even as we focus on our scientific and engineering work.
", u'post_id': 552, u'date': u'2016-11-16 17:13:20'}, {u'user_id': 3, u'title': u'Question to Organisers', u'comment_id': 6933, u'content': u'My two cents,\xa0@dfko, as someone involved in building a movement (as one seems to be\xa0these days, as if there\'s no other way [sic]):
\n\nNot to be too pessimistic although it\'s in the air given recent events in the US, but it seems that no matter how good a scientist or how decent your values are, or how promising your early results:\xa0common decency is no longer enough and one has to have grit. In other words, I feel\xa0more and more that any ambitious effort to lead to\xa0greater equality, access, fairness in the world needs to become somewhat\xa0political and build consistent support behind them.\xa0
\n\nExample: look at Academia as a space for sharing expertise and see whether it is going in the right direction paywalling everything and being very slow to reform in terms of open access policies. What you have is a set of no-way-out reactions,\xa0people like A. Swartz or this lady in Kazakhstan\xa0taking action in their own hands. I would not favor those of course, but middle ways are long term battles with a lot of coordination across the net. Repeat, repeat, repeat..\xa0
', u'post_id': 552, u'date': u'2016-11-10 16:34:00'}, {u'user_id': 8, u'title': u'Financials?', u'comment_id': 29076, u'content': u'Ciao Simone,
\n\nsomething which would be helpful is information about one time costs and running costs involved for participants? How do they compare to regular market rates for purchasing property in Milano?
', u'post_id': 743, u'date': u'2017-02-28 13:02:11'}, {u'user_id': 3, u'title': u'Coming to town!', u'comment_id': 27814, u'content': u'Hei @Simonedb, with @Alberto we\'re going to be in Milano end of the month - probably there on the 27th. I would love to come visit you at the house, or even meet up in the city, maybe a dinner with\xa0other community members?\xa0Let me know if you\'re free those days? Sunday 27th or afternoons during the week days (28, 29)? You know my email
one big asnwer. i - we dont wanna say we are the best, we are the benchmakr. we failed a lot of times. becasue mainly co-living takes time and it is not a professional activity. this is not a community like organization that lives as a whole, it is the sum of families which tried to improve a better way of living in a light way. so no huge ambition was inside it, so i feel that everything that happen is like a miracle, even with all the troubles and limitation increased also by the economic crises that hit so many of us here.
\n\nthe very very starting point was a private real estate project that used co-hpusing as amktg attractor, but then the community create and organised itself, even because the company disappered afterselling - here my comments abot hard to relie on biz people fo these kind, we should develop out own independent way to create this places,\xa0everybody bought home, no rent was possibile, but..why not.
\n\nmicrowelfare. we sill live in a "normal way"...but we share time, infromation, products, \xa0skills, decision maing on shared purchases...anycase it is a light version of what you think.
\n\nwe acted on single issues like local areas transformation together with other gourps, we hosted meeting people, activties of other assocaition and took aprt in them.
\n\ninfromal relatioship with neightbour people/family also nice. we had a purchase group for quite a while
\n\nlocal government is burocratic-politics and slow, almost no budget...
\n\nalso here we have many lesson learned also about mistakes.
\n\nother groups came here to get inspiration, infromation and advise about to form themself. few manged to do it. politecno of milan use us a good case to show what can be done as a minimum.
\n\nwe had never had greater ambitions becasue it would need a lot of time..but with open and care some of us feel that we can finally give a stronger contribuition
', u'post_id': 743, u'date': u'2016-09-18 09:37:07'}, {u'user_id': 3367, u'title': u'So many questions', u'comment_id': 21004, u'content': u'Thanks so much for sharing your story! Apologies in advance, this is pretty much all questions, I think we can learn a lot from your experience creating this form of housing and the way its changed over the years. I especially relate to and heed your advice about the too many meetings thing . I\u2019m curious to know more about the impetus for starting such a project, if as you say didn\u2019t know each other and had no common identity or belonging, how did you find each other and make the\xa0decision together?\xa0 Also curious to know how it was initially funded, did you rent or buy a building and grow from there or did you build something new (the image with your post is a co-housing experiment I\u2019m somewhat familiar with, is it related somehow?).
In regards \u201cmicro-welfare\u201d and mutual support, have you communized your money or is there a separate fund that members pay into for these kinds of things? This is something we\u2019ve been discussing for our group and haven\u2019t figured out quite how to do it with the constraints of an economy like NYC. Have these things created a situation where people are able to work less or not at all?\xa0
\n\nIn regards the \u201cgated community\u201d comment and talking about how you interact with the greater neighborhood, I\'m curious to know how you\u2019ve navigated this and what your outwardly facing presence is like both in terms of your activity and the neighborhoods perception of your community.\xa0 If you work with local government/neighborhood councils, is this something you do out of necessity, as something that sees it as a tool but not a goal or does that participation have value to you in and of itself? I ask because we\'ve gotten involved with local government at times, but we see it as purely strategic, we won\'t do anything with them that would require some kind of compromise because ultimately we are interested in autonomy from all forms of governance. We think of our outward facing projects as building a territory. In\xa0a place like nyc where creating one\xa0large place where many people can live together and actually spatially put their lives in common is not really possible, we have formed a network that is concentrated in a neighborhood but spreads across the whole city and connects with like minded hubs in the rest of the country. An important question we ask ourselves is how do we keep this open to all forms of life that would grow our power and we theirs. I would pose the same to your group, how do keep it from becoming an isolated, if enviable situation, which is not merely its own ends?\xa0 Would love to know if your model has the intention to put itself forth as a form that could be replicable, maybe it alreay\xa0does? If you have ways that you formally share your experiences with other groups so they might learn and begin to try these things for themselves in their particular regions? Would love to know more about any or\xa0all of these things.
', u'post_id': 743, u'date': u'2016-09-16 18:05:11'}, {u'user_id': 3, u'title': u'Can we connect with someone in there?', u'comment_id': 18457, u'content': u'@Alberto do you think\xa0we can contact someone\xa0to learn\xa0from the other side, from\xa0a facilitator/ community manager\xa0involved in\xa0a social policy like this, but hear\xa0a personal experience nonetheless..?\xa0I think it would add nicely to Simone\'s story.
\n\n(I\'m asking you because\xa0I see Simone has a lot of questions addressed below, so no need to load more.. \xa0
thjey are rebranding, re shaping strategy and muc more things..i deal with them for work purposes...but the chance here is get support of expereinces (good and bad) from families who knows what can mean to live like this without a religous/political/frienship\xa0previous shared background.
\n\ncompanies or big institutions can probaly leverage on stronge assessts for the real estate side but usually those managers have no idea of what living together can be in this way.\xa0
\n\nexternal supervisor or facilitators can be one option but sure also they like of direct experience, rural communities or scout or this kind of experience has less chances to be useful to enhance a spread out co-living (and maybe also co-working projects)\xa0\xa0\xa0
', u'post_id': 743, u'date': u'2016-09-16 10:22:21'}, {u'user_id': 4, u'title': u'Many lessons learned', u'comment_id': 15499, u'content': u'I have known about this project for\xa0years (I have even visited!), and\xa0really like the way you guys seem to have adjusted and improved your ways of living together. My own co-living experiment is much smaller, and much younger than yours... there is a lot to learn here.\xa0
\n\nI just re-read The Book of Community\xa0by @lasindias (also a long-lasting co-living), and found it very rich in insights. Available for free in Spanish and English (can\'t find the link to the English version at the moment, but I have it).\xa0
\n\nCassa depositi e prestiti has a very large social-co-housing scheme on the road. We discussed getting involved with them, but they are being quite slow in making a decision.
cassa depositi e prestiti operate usually on big projects 8its the finacial side of the government) together with fondazione cariplo.
\n\nwe are a group of family living together...not suc support...
', u'post_id': 743, u'date': u'2016-09-16 10:18:42'}, {u'user_id': 3, u'title': u'I recognise this story!', u'comment_id': 8575, u'content': u'Wow @Simonedb it\'s been too long! I remember this experiment from back in the days when you shared on the first Edgeryders platform.
\n\nAlberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and\xa0one of the units in each building is rented to the "community manager" tasked with working on social ties between people. Not sure about details, but it seems it\'s financed by Casa Depositi e Prestiti.\xa0Does your project have anything to do with it\xa0or better yet: do you see your project\xa0coming to influence social policies in Italy? It seems it\'s 8 years along the line and you guys seem to have great results to show as to what the future looks like.
', u'post_id': 743, u'date': u'2016-09-15 13:04:00'}, {u'user_id': 3, u'title': u'An optimist?', u'comment_id': 30992, u'content': u'@mariam1313 thanks again for being so responsive, I can imagine a long thread like this can be somewhat confusing
For myself, the lessons - far and beyond the existance of institutional policies per se - are those which are carried by the people involved: civil servants or citizens directly involved in these processes. For example I remember the story about Rustavi\'s participatory budgeting and Revaz\'s enthusiasm to be involved in implementation. However, there is more to learn about the outcomes of it - for example, in Cluj where I live they ran a 3 step process starting from the neighborhood level. But it involved a lot of deliberation - as Alberto was writing above, that means showing up at neighborhood meetings (physical). They nonetheless got to testing it at the city level, but a lot of the energy got dissipated in sending in proposals to compete for online votes\xa0(>400\xa0projects)! and ending up funding very few with little money (1000 eur per winning project - about 50 of them).\xa0 I don\'t want to think of the amount that went into the administration of it, but you see where this goes. That was in 2014-2015, no news since, and more importantly, it\'s unclear whether it was considered successful or not in order to move further in an upgraded version. Anyway, this is just an example.. \xa0hope Rustavi will do much better, but also that people running it are considering risks too.
', u'post_id': 726, u'date': u'2017-02-25 15:49:08'}, {u'user_id': 4, u'title': u'The limits to participation', u'comment_id': 30886, u'content': u'Thanks for chipping in, @mariam1313 !\xa0
\n\nLike you, I am interested in participation. My own work has been about ways that the Internet can enable more effective forms of participatory democracy. I even wrote a book about this. My point of departure was that participation as we inherited it from the 20th has not made a substantial impact on decision quality or societal cohesion, at least not in Italy, not even in the best cases. There are many reasons why this happens. Some of them:
\n\nI have recently been involved in contributing to Italy\'s 3rd action plan under the Open Government Partnership (as an activist, unpaid). My brothers-and-sisters-in-arms and myself made these points quite forcefully, and they have been adopted by the government. Here\'s to hoping for better times.
Hi everyone, this is to introduce @mariam1313 and also draw her attention to this conversation. She\'s working in Georgian public sector in areas of innovation. Mariam can we\xa0quickly pick your brains on this? Above Franca (Milano), Yannick (Brussels), Winnie (Ghent) and\xa0Alberto whom you know\xa0are sharing experiences about what it takes for accountable and efficient gov programming to happen in order to better support citizens and initiatives. Franca (working on the inside of the system) said that\xa0the public administration needs to learn to become a facilitator and enabler of solutions, not necessarily THE solution provider which fails in so many cases. Do you have an example of good governance from your office? Or healthy collaboration between policy makers and technicians/ citizen experts/ creative people etc? Thanks, and officially: welcome on the platform!
', u'post_id': 726, u'date': u'2017-01-26 22:36:05'}, {u'user_id': 3362, u'title': u'Nice example', u'comment_id': 30485, u'content': u'@Alberto That is a beautiful example of this harmful shift towards \'control\' and \'planning\', inspired by uncertainty and distrust, while we should be shifting towards a dynamic\xa0interplay between \'noticing\' and \'steering\', inspired by best estimates and trust.
\n\nI do think that institutions and companies are (perhaps unknowingly)\xa0looking for these qualities\xa0when you see trends in expectations set by job offerings, although they use different words. Yet ironically, those companies and institutions seem to lack the \'noticing\' and \'steering\' qualities to realise what they are actually\xa0looking for and thus be good at recruiting the people who have what it takes.
\n\nYou have a good point about isolation and depreciation of skill sets. Keeping your workforce up to date entails both education and turnover.
', u'post_id': 726, u'date': u'2017-01-06 17:01:08'}, {u'user_id': 4, u'title': u'Low level rules are the most important', u'comment_id': 30444, u'content': u'@WinniePoncelet I completely agree with your point of view. The political process (and media) focus on high-level strategies, but the greatest impact reforms would come from reforming the govt\'s operating system: quite simply, the affordances of people therein. Example: my sister works for an Italian municipality called Modena. In a drive to contain costs, some genius passed an internal regulation that employees travelling on business ("missions", as they are known in the public sector) need an authorization from the highest political level (giunta\xa0in Italian, which means the mayor and her close collaborators). This is such a hassle that in 99.9% of the cases managers renounce. Employees do not get to go to conferences. As a result, over time the whole workforce becomes isolated and its skillset depreciates and withers.\xa0
\n\nChanging this does not require a strategy. A workforce that stays up to date would help any mayor, be she conservative or progressive. It does not require changing the law, either. The city council could simply vote a resolution allocating a modest budget that each employee can use to go to conferences and events they are interested in. This would have a massive impact, in my opinion. Maybe @Franca has an idea of how these decisions are made (or, in the case of Modena, not made).\xa0
', u'post_id': 726, u'date': u'2017-01-01 13:57:54'}, {u'user_id': 3362, u'title': u'Great', u'comment_id': 30318, u'content': u'@Franca I think having this conversation is a great first step. It\'s going to be a very complex problem to solve. Its tentacles go so far into other domains that are even more fundamental to our society.
\n\nWhen we\xa0set out to solve a complex problem in our organisation, we\xa0start with small actions that change the context a little. Small experiments that can fail, but the lessons of which can scale big. A great example in government is a challenge this month of my own city where they will distribute 1,300,000 euros among civilian projects that aim to have a positive impact on the city. Citizen vote will account for 70% in the decision where the money goes. I don\'t think popularity contests are the best way to do this either, but it\'s a beginning and will change the playing field.
\n\nYet this is already at the interface with the public, at the policy level. Most\xa0possible small experiments I can think of\xa0would all very likely fail at another point: the government itself. The\xa0processes, people, time perception, incentive structures, ... Seperately these things\xa0are not huge problems, but together they form a problem where there are little starting points to start solving it. I\'d say the most important problem for\xa0the government to solve today, is the government itself, not the policies\xa0it produces. So we need small actions in that aspect, eg. hiring a few recruiters that recognise the skills needed to implement change. And then you can sustainably keep producing\xa0good policy, even parallel while changing the internals.
', u'post_id': 726, u'date': u'2016-12-29 22:10:35'}, {u'user_id': 3324, u'title': u'great!', u'comment_id': 29961, u'content': u'Hi @WinniePoncelet, \u201cA government platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.\u201d
\n\nin my opinion you have touched a key point. When you work in a public administration the relation between technicians and politicians are crucial, in particular if you want to do something, if you want really realize new and innovative projects. In many situations for example the fact that a politician is engaged in a project became the only possibility to realize the projects.
\n\nIn many situations I saw terrible fights \u2018politicians versus technicians\u2019, but also collaborative approach, with a sharing of knowledge, working together for the same objectives.
\n\nAlso the project of @Yannick seems very interesting and I would like to know more\u2026 could you give us more details?
\n\nAs we announced we launched a challenge.
\n\nCould you read it and tell us if you think it\u2019s interesting written in this way or if you want to change something.. Every your suggestion will be precious!!!
\n\nNow we are starting to disseminate the challenge among some local partners, NGOs, associations that are working with us, but also among other local italian municipalities.
\n\nCould you help us to engage other political actors, as @Alberto suggested??
\n\nIt could be really great and potentially of huge impact\u2026 what do you think??
\n\nI totally agree, @Yannick , we can do many things on our own. The "smart swarm" model we pioneered with Open&Change has a lot of potential and, like you say, it can be applied to mamy things beyond care. It is a potentially powerful tool.
\n\nBut I would not underestimate policy. A determined policy maker can make stuff happen. In 2012, Milano invented a new policy that works like this: they put out a list of 100 entire buildings, and 1,000 smaller spaces, that the city owns. You can have one of them, for free and for up to 30 years, as long as you (1) fix it and maintain it with your own money and (2) use it for activities that have social benefits. The city is being quite proactive: in one neighborhood it might encourage activities that interest young people, in another the focus might be on migrants etc. (see here, in Italian). It\'s the same thing you are doing at VDH, Yannick, but on a much larger scale.\xa0
\n\nI, for one, am very interested in having a discussion on policy with you guys. I would be more than willing to reach out to other policy makers too. What do you think?
', u'post_id': 726, u'date': u'2016-12-07 22:01:36'}, {u'user_id': 3293, u'title': u'Great to read this :)', u'comment_id': 29073, u'content': u'Hey @Franca and @WinniePoncelet thanks for these comments.
\n\nWhat you wrote Franca is really great to read, because it is the first time actually having a policy maker understanding so well the principle of an open care system, but also discribing the role a governement has to play in the futur. He is there as a facilitator, giving the right tools to test and later on help scale the bottom up initiatives. In such way the governement becomes a currator, not simply a gatekeeper of the funds, but the person who helps grow the talented projects.\xa0
\n\nWinnie i know what you are discribing, with my years of activism i had\xa0mostly the same kind of experience \xa0with policy makers in Brussels. Getting funds is tricky because you need to behave a certain way because \'they\' have the power in hand, you have to calculate who is going to get the portefieulle in next couple of years and so on.\xa0
\n\nBut a couple of days ago a kind of epiphany came accross. In fact like what edgeryders does on care, we can create locally on any topic, creating an easy swarm of projects that can become a lever to not wait till policy is written, but to shape what it is going to be without having to play the political game. We are going to do this exercice with the Brussels makers scene through the FabCity platform of Barcelona. Bringing projects towards organisations and spaces and coordinating these spaces to communicate as one about their needs towards politics. In such way that we don\'t have the proposal from politics: let\'s just build 170 fablabs for 2020, but that through the swarm of knowledge know what are really the necesities.\xa0
\n\nHope i could contribute to this nice debate;
', u'post_id': 726, u'date': u'2016-12-05 15:01:49'}, {u'user_id': 3362, u'title': u'"We\u2019are thinking to develop this idea: became an ', u'comment_id': 28966, u'content': u'"We\u2019are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective."
\n\nFrom the perspective of our organisation, this is exactly what we need. We follow this strategy internally in our organisation as well: test lots of things in a small cheap way, evaluate,\xa0scale, evaluate and so on. In my city this is done sometimes, like with the Living Streets\xa0project. The city was cooperative enough to let them test the idea. These are exceptions sadly.
\n\nI\'ve been to a few city organised or backed \'workshops\' meant to shape the future of the city. The workshops\xa0all lack\xa0the same: citizens present. Generally, they\xa0are organised during working hours and the only participants are civil servants and companies/entrepreneurs that have an economic\xa0stake in the issue. The details of how these workshops go, are pathetic. And it\'s packaged and sold to the citizens as \'co-creation\'. Last one was most striking. A workshop on urban planning,\xa0commissioned by the city and organised by the same organisations that were involved in an ongoing massive real estate scandal. The workshop itself featured only entrepreneurs and project developers, talking about matters that affect everyone.\xa0Already at this basic level, the city fails. How can anything good come from such a basis?
\n\nMaybe this is how at least a little good can come from it. Our city has an image of being progressive and there are lots of projects that prove this. In the end however, politicians mainly want to get re-elected or get a better position next term. This means they need to live up to public expectations and produce impact in the short term. The fact that people here expect politicians to be more progressive, means the politician\'s\xa0output will have to be\xa0more progressive in order to make a career. As a result we have a pretty awesome city.\xa0However,\xa0it\'s a sugary coating that\xa0hides the broken way in\xa0which we are governed.
\n\nI\'ve been advised by a project coordinator to stay away from help from the city. She described it like this: if we were to receive support from the educational department under politician x from party a, next term all support could be gone under politician y\xa0from party b. Because politician y needs to have their own projects for their curriculum, so the limited means need to go towards launching new initiatives from scratch under their term. Also, draining a project from a political opponent diminishes that opponent\'s credibility. This is such a waste on so many levels: money, knowledge, time, ... Not to mention the competitive atmosphere this actually creates between projects that otherwise share a similar purpose.
\n\nMy own experience:\xa0I contacted the city anyway a few months back. I mailed with the responsible politician and she directed me to the civil servant at the bottom of the \'food chain\'. We met, she was impressed by our project and clearly wanted to help. She promised me to take the message back up the food chain, but assured me it would take a while, and keep me updated along the way. The department got restructured, so this was slowing things down.\xa0Fast forward 2 months, no news, and our project is already in a different stage. Time flows differently for the government,\xa0I hope people\xa0age\xa0slower as a perk for working there.
\n\nA government\xa0platform for projects to grow at their own speed would be a major improvement. De-coupling this platform from political incentives is a priority.
', u'post_id': 726, u'date': u'2016-12-04 17:38:27'}, {u'user_id': 4, u'title': u'Meet Franca, everyone', u'comment_id': 28463, u'content': u'Ping @Philippe_Drouillon | @Yannick | @WinniePoncelet\xa0
\n\nEveryone, meet @Franca . What she is not saying is that she\xa0is\xa0government, or, better, that she works for the Milan\xa0City Hall. I showed her Yannick\'s post and your comments; it resonates with her and her colleagues, because, just as Yannick probably imagined when he first wrote the post, they crave this kind of frank-yet-constructive dialogue with citizens.\xa0
\n\nIt would be interesting to challenge the opencare community to find actual policies of care that "give back the floor to those who act", to use Philippe\'s very nice phrasing. What do you guys think? How would you see it happening?\xa0
', u'post_id': 726, u'date': u'2016-12-02 13:10:16'}, {u'user_id': 3324, u'title': u'Open policy making process', u'comment_id': 27810, u'content': u'Thanks @Alberto!! This story and comments are REALLY interesting, also as a starting point for our challenge and the discussion that we would like to share here. Starting from Ginette/@Yannick perspective that identify these 2 main forms of Care: 1. Care that cames from love and friendship: 2. All other forms need to be done by the Government.
\n\nSo the problem of scalability. We are seeing in our City and in Edgeryders, a lot of interesting care projects, community driven, but the idea is that the role for Government is to guarantee the scalability.
\n\nWhat is the scalability?
\n\nIn my opinion the scalability could be possible only if these new solutions, new approaches became part of an open policy making process.
\n\nSo, in our case, the Local Administration has to became an observator, a facilitator of these initiatives, helping them to evaluate their own effectiveness and impact.
\n\nIn our experiences we\u2019re observing many interesting care projects that are developed by communities, using new approaches to care, involving new actors (makers, hackers..)
\n\nThese experiences are helping us to change also our services directly, to manage our services in new ways, trying to recompose the fragmented network of Care.
\n\nI think that Government could be not an obstacle, or a part of the problem, risk that @winnieponcelet reported, but \xa0(hopefully!!) a part of the solution: if tha PA can change its perspective and tries \xa0not to be THE actor, the only care provider really allowed to do something, but one of the actors.
\n\nAlso, maybe, to guarantee not to fall to a neoliberalism way to solve problems..
\n\nBut in which role?
\n\nWe\u2019are thinking to develop this idea: became an enabling platform that can facilitate the dissemination of some solutions, and create the conditions to replicate in a large scale what has been evaluated effective.
\n\nBut it\u2019s not simple, and of course we\u2019re talking in general.
\n\nWe want to open a challenge about this topic because we would like to stimulate a debate and also find concrete examples about the role that in each project could/should be done by a Public Administration (in particular Municipalities).
\n\nWe\u2018ll share also some stories of our administration that in our opinion are going in this direction, to rethink traditional services in the new context of Care.
\n\nThis conversation could maybe became also a way to create a path for discussing how civil servants could continue to believe to do a \u201creal work\u201d and not just a prescribed, traditional work, @PhilippeDrouillon.
\n\nWhat do you think?
', u'post_id': 726, u'date': u'2016-12-02 13:07:05'}, {u'user_id': 4, u'title': u'Discussing about "policy for opencare" tight now', u'comment_id': 26036, u'content': u'Hello @Yannick , @Philippe_Drouillon , @WinniePoncelet . Just letting you know that @Rossana_Torri , @Franca and their colleagues of the City of Milano are considering creating a challenge on policy for opencare within this conversation we are having. They hope to report on some experiences they are having now in Milan and (hopefully) get feedback, both from their local community in Milan and from the more global conversation here. They are smart, well-meaning civil servants serving under relatively enlightened political leadership (though this is Italy, and government is quite fragile and operates under a lot of constraints).\xa0I have now pointed them to this thread, hopefully they will have something to say.\xa0
', u'post_id': 726, u'date': u'2016-11-29 15:04:30'}, {u'user_id': 3081, u'title': u'Giving back to floor to those who act', u'comment_id': 24331, u'content': u'@Noemi, My two cents about your questions. The ethical suffering can occur in any organization where it is required to do things that are too far from what actual work should look like in the eyes of the concerned people who are passionated about what they do.
\n\nI\'ve observed such situations in not for profit AND in for profit organizations even though the purpose and the values behind the organization were sensefull for people. It is about the meaning of the work to be done and the way it is asked.
\n\nIndeed distributed decision making processes\xa0(cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them),\xa0the autonomy of each team and individual in his/her area of competence and responsibility\xa0(where each person\xa0is sometimes leader\xa0and sometimes follower)\xa0combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones\xa0to move forward in the right direction.
\n\nWhat is meant by heath at work ? Do we speak about fitness,\xa0yoga and mindfulness ? If so, it is just an approach to relieve people and allow them to go on in an unsatisfactory environment. If it comes on top of the characteristics I mentioned\xa0hereabove, it\xa0will be the ice on the cake.
\n\nLast but not least, working for a purpose-led\xa0organization that strives for a better world will surely help at the condition that the way this organization works is consistent with its aspiration.
', u'post_id': 726, u'date': u'2016-09-05 15:27:35'}, {u'user_id': 3, u'title': u'Aw :-(', u'comment_id': 22857, u'content': u'Probably the easiest is to find\xa0a human\xa0carrier, you never know with medicine across borders.
', u'post_id': 726, u'date': u'2016-09-09 08:50:23'}, {u'user_id': 3362, u'title': u'Interesting outcome', u'comment_id': 22723, u'content': u"That's an interesting development! Thanks for sharing.
\n\nI'm\xa0actually trying\xa0to send some medicines to a friend in Serbia at the moment, because he got the meds\xa0prescribed for Lyme\xa0but cannot buy them\xa0over there. It really doesn't make any sense at all.
", u'post_id': 726, u'date': u'2016-09-08 21:51:57'}, {u'user_id': 3, u'title': u'I see similar things', u'comment_id': 22226, u'content': u'I see people in today\'s fairly young\xa0generations building professional paths along these lines. One of the latest political party in Romania running for national elections is a formerly local political party founded by civic activists. Now they\'re going national, after the founder has seen 25% support in the local elections. However it looks like titanic work, their lack of\xa0experience shows many times, and funding missing.\xa0The road is uncertain, but attests to the idea\xa0above.\xa0
\n\nAlso, my story of a grassroots\xa0innovation in the\xa0medical system which a few years later contributed to the founder\xa0being appointed Minister of Health also makes the case.
', u'post_id': 726, u'date': u'2016-09-06 08:42:02'}, {u'user_id': 3362, u'title': u'Shift away from political activism', u'comment_id': 20946, u'content': u"Nice input from Ginette and valid points.
\n\nLast week I had several conversations with philosophy friends of mine who noted the same in their research or otherwise. They made some interesting points.\xa0I tried to reconstruct them, but there might be some holes in it.
\n\nMost 'activism' today is done by do-ers. Bottom-up initiatives that took it upon themselves to solve problems that governments should take care of.\xa0They noted that this shift to just getting your hands dirty and\xa0not\xa0wait for\xa0government action\xa0is actually quite\xa0a neo-liberal way of solving problems.
\n\nThe\xa0ideal of May '68 has become ingrained in the way the mainstream thinks.\xa0The loss of faith in government and institutions has become part of a normal way of thinking. Management and corporations have adopted it in a way: they want to get\xa0rid of the old and slow processes, they want radical disruption asap\xa0and would like as few interventions by government\xa0as possible. Government is mainly seen as an obstacle at this point.
\n\nBottom-up initiatives follow the same reasoning to a large extent. Government is one of the obstacles to be overcome, because they're perceived as ingerently part of the problem, almost an external factor that is unchangeable. But they have to do it\xa0with less means,\xa0less people and less power (leading to the burnout problem).\xa0Additionally, the whole neo-liberal side\xa0will see these projects and initiators as 'one of them', because of the shared 'entrepreneurial activism'. For an outsider, the difference between both fades.
\n\nOne of their conclusions was that there is a\xa0need for political activism by these bottom-up activists right now, rather than only acting boots on the ground. Otherwise real systemic change may not follow, as politics today is mainly politics for the sake of politics, heavily influenced by big economy.
\n\nWhat do you think about this?
", u'post_id': 726, u'date': u'2016-09-03 09:22:34'}, {u'user_id': 3, u'title': u'"giving back the floor to those who act"', u'comment_id': 17774, u'content': u'@Philippe_Drouillon welcome back! This ethical suffering idea of yours reads really interesting, I can see your point and will try to add something to it.
\n\nBy new ways of giving back the floor to doers, do you mean new decision making models? Or more tolerance for the doers in an organisation run in traditional way, a way of compromising?\xa0
\n\nOur community conversations so far mention burnout in\xa0entirely\xa0new kinds of\xa0organisations growing from bottom up movements. You\'d say these new orgs\xa0could be\xa0better candidates for diminishing that tension and ethical conflict. I myself am an exhibit of that.\xa0But you also see people like\xa0@marcoclausen reporting cases of community activists lost in simply too many requirements which they hadn\'t signed up for.\xa0\xa0They come with the "job description" so to speak, especially in a non-sustainable environment where you have to compensate for roles you can\'t afford to pay for.\xa0So you have cases of burnout\xa0because of simple overwork,\xa0even with passsion and alignment between what is required and what you want to do.
\n\nCurious, from your experience of working with both co-ops and more traditional\xa0businesses:\xa0is sustainability of an organisation correlated with\xa0healthiness of work? Here I\xa0mean\xa0the quality of what it produces, its impact. Maybe if there were some roadmaps or a system of sustainability\xa0rewards that come with keeping healthy at work, at\xa0the expense of some other things, we\'d get better at moving our work forward.
', u'post_id': 726, u'date': u'2016-09-05 15:07:20'}, {u'user_id': 3081, u'title': u'Re one of the three areas mentioned by G. Bauwens - Burn Out', u'comment_id': 15056, u'content': u'One main finding made by field researchers about burn out is that one of the main factors that leads people to burn out is "ethical suffering" (litteral translation of the original expression in French "souffrance \xe9thique") and this before workload.
\n\nWhat does that mean ? Stress often comes from a conflict of values between prescribed work and "real" work, "real" in the sense of\xa0what really has to be done in a correct way.
\n\nA large amount of professionals who get burnt out couldn\'t live anymore with the contradiction between what is asked and what should really be done. And I don\'t speak about\xa0ethics from ideological point of view. Just the tension between what is asked and what true professionals believe should be done (eg : social workers in big institutions, engineers in industrial companies, nurses in hospitals,...). The fact that there\xa0is no place anymore for true\xa0dialogue,\xa0exchanges and co-construction around their own practices worsened the situation.
\n\nSo bringing "real\' work in the center of the operations\xa0by giving back the floor to those who act is a way that is currently implemented in a few organizations to significantly reduce the risk of burn out. By organizations, I mean not-for-profit, for-profit or public organizations. None of them is immune to this illness...especially the not-for-profit ones like NGOs.
\n\nAnd this is without mentioning the ethical conflicts that workers can have between their own values and those shown withing the organizations they work for. And this is another (big) story.
', u'post_id': 726, u'date': u'2016-08-29 16:28:23'}, {u'user_id': 3, u'title': u'Learning from concrete wins or lost battles?', u'comment_id': 7853, u'content': u'I\'m grateful to Ginette for her opinions and super curious to see if she has experienced victories too in her work, even small ones. In a conversation I had the other day with a friend well versed in NGO work and having quit, she mentioned something suprising to me: that for her it is the proper third sector having a chance of changing things, not the bottom up grassroots. So you see, all sorts of distinctions are being made, but I recognize the bottom line - the need for structured processes,\xa0paths to access resources, influence etc.
\n\nMy opinion is not worth much, in fact we can be right and agreeing\xa0and still not go anywhere 
\xa0From the years I\'ve been working in this field, what I\'ve seen is doors opening and an ability from policy makers to listen.\xa0With unMonastery\xa0called in by a city, Futurespotters\xa0by UNDP,\xa0new doors opening thanks to them and other consultancy work, and so on. It feels to me hard to think about large scale change, but seeing a progression makes me more hopeful than at time zero, if that means much.\xa0If Edgeryders is anything of a counter culture movement, than it is also true that from the beginning the position was to open\xa0channels for collaboration between very diverse people. And guess what:\xa0over the years people in\xa0policy making\xa0have joined too, and were honest about their own limitations as institution representatives - for example, this is someone who at the time of engaging was\xa0in the Amsterdam City Council and here asking about basic income and how it would work.\xa0
So to\xa0me, if OpenCare with\xa0the workshops and future\xa0activities manages to open a real channel, that is already a win. Then to move forward, I can see the need for\xa0someone to pick their battles\xa0and perseverate in that.. and who\xa0knows how long that\xa0takes. \xa0\xa0
', u'post_id': 726, u'date': u'2016-08-29 13:55:32'}, {u'user_id': 3, u'title': u'FYI this is a finalist project at 100andChange', u'comment_id': 24126, u'content': u'Well spotted @Natalia_Skoczylas I was looking at the list of finalists for the competition by MacArthur and guess what: OpenandChange didn\'t go through (bummer!), but a global version of this project is included, as expected, with the Tilganga Institute as partner. Niceee.
Here are all the 8 finalists.
', u'post_id': 709, u'date': u'2017-02-16 20:12:11'}, {u'user_id': 2915, u'title': u'The SEVA Foundation', u'comment_id': 20294, u'content': u'\n\nhas been working to save eyesight in Nepal for many years. \xa0SEVA was co-founded by Dr. Larry Brilliant, who co-founded The WELL. \xa0I don\'t know if they work directly with Dr. Ruit, but it would not surprise me.
\n\nFrom the SEVA website, "Since 1978, Seva has worked with partners in Nepal to develop a network of eye care providers and services. Seva Nepal, a local Seva Foundation office, supports continuing medical education, professional training, and provides surgical equipment and supplies, all of which serve to increase the quality of patient care.\xa0
\n\nAll aspects of Seva Nepal\u2019s programs serve to build the capacity of local hospitals to deliver high quality, sustainable eye care. By equipping our partners with the tools they need to provide quality, efficient services, Seva builds locally-run eye care programs that are self-sustaining within 5-10 years of establishment."
', u'post_id': 709, u'date': u'2016-12-04 15:05:31'}, {u'user_id': 4, u'title': u'So is it problem solved?', u'comment_id': 14907, u'content': u'"Within a matter of hours, the team can turn a dusty schoolhouse, or whatever building is available, into an equivalent medical ward where sight-restoring surgery is carried out to comparable standards found in the developed world." (source)
\n\nThis looks like a good fit for community-driven care. You still need ophtalmologists, but the infrastructure around the treatment is minimal and can be conjured by communities. So... is it happening?\xa0
', u'post_id': 709, u'date': u'2016-12-03 22:32:12'}, {u'user_id': 3, u'title': u'I like most the idea of going where the biggest need is', u'comment_id': 10626, u'content': u'Wow,\xa0they set up surgery camps in the most remote areas. "All of his equipment fits in just one yellow duffel bag" - it feels like a dream to be able / allowed to do this ad hoc in\xa0first world countries.\xa0
\n\n20 years later, their model seems basic yet very advanced, working at scale\xa0- they\'ve built up a huge network of partnerships,\xa0residencies, training camps, on-site mentoring, volunteers exchange programs.
\n\nHave you met anyone in Nepal involved in this @Natalia_Skoczylas?
', u'post_id': 709, u'date': u'2016-08-04 11:16:36'}, {u'user_id': 3543, u'title': u'thx!', u'comment_id': 26021, u'content': u'also slightly confused about how to delete my own comment (this one itself)
thx! for the seeings, will forward to amanda!!
\n\nps: I am slightly confused abt the subject linke of your msg though...?!
', u'post_id': 699, u'date': u'2017-02-13 12:42:15'}, {u'user_id': 8, u'title': u'Opens with Robyn sample :)', u'comment_id': 24959, u'content': u'Hi Felix. Amanda\'s video was a bit slow and I didn\'t get how the app would work?\xa0
\n\nI think one some of\xa0challenges included are the cost of producing content as well as community management. @Augusto_Pirovano and @Matteo_Uguzzoni have a lot of experience in running urban games and I think they might have a lot of valuable experience to shar.
', u'post_id': 699, u'date': u'2017-02-13 11:48:04'}, {u'user_id': 3543, u'title': u'similar app in sweden (prototype)', u'comment_id': 23928, u'content': u'heyhey,
\n\ncheck this out:\xa0https://www.youtube.com/watch?v=qLGTsUj9jOc&feature=youtu.be&ab_channel=AmandaPousetteW
\n\nsome similarities, no? I think the app doesnt really exist yet. but I think I could put you in touch with the person behind it all, Amanda...?!
\n\nbest,
\n\nfelix
', u'post_id': 699, u'date': u'2017-02-13 09:14:50'}, {u'user_id': 3339, u'title': u'Interesting and not that hard to hit target', u'comment_id': 20130, u'content': u'Hi! I really like your idea and I think it can work out very well.
\n\nFrom what you presented and how funny it seems, I think people can easily take it as an adventure call and that\u2019s nice. But I think you should pay attention so that the purpose of your project is understood: the fact that it\u2019s referring to refugees groups. For example, is the app going to be in German? Or what other languages? Refugees might have difficulties learning German (and not only refugees, newcomers too)\u2026 How is the project evolving, by the way?
@Alberto gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and caf\xe9s. Still we have collect more but this will happen as soon as we get it expanded. We work on it.
', u'post_id': 699, u'date': u'2016-07-04 14:30:50'}, {u'user_id': 4, u'title': u'Not bad! ', u'comment_id': 9052, u'content': u'Very simple idea... it could actually work!\xa0
\n\nI don\'t understand the "city-rally" part, though. Is it gamified?\xa0
\n\nHave you sounded the idea out with bars and caf\xe9s yet?\xa0
', u'post_id': 699, u'date': u'2016-06-30 11:13:41'}, {u'user_id': 3545, u'title': u"It's happening...", u'comment_id': 31827, u'content': u'\n', u'post_id': 758, u'date': u'2017-02-12 20:30:15'}, {u'user_id': 3545, u'title': u'Co-housing', u'comment_id': 31537, u'content': u'\n\nDefinitely agree with the idea of addressing preventative measures as a priority - and across healthcare too. (Drives me mad that the public purse is spending billions on obesity, whilst big food corporates are profiting from cheap, sugary, snack sales...)
\n\nThe preventative works with mental health and capacity too - keeping active and interacting with others helps no end.
\n\nThere\'s been a lot of mention of finding new ways of addressing the issues with caring for the elderly in recent weeks, especially with the problems of capacity in A&E and more general hospital wards due to the lack of the necessary social care. Heard of a scheme in Wakefield the other day, where triage is used between various branches of care (hospital, local GP / nurses, local or community facilities such as care homes) which was proving very effective at managing need and ensuring "efficient" (for want of a better word) addressing of peoples\' needs. (Some volunteer services, such as Help the Aged and the like were involved to help with transport and checking on a patient when they were ready to go home, rather than them waiting for ambulance services and staff from\xa0social care services to check on their immediate needs once back - but this did seem better than the individual concerned waiting unnecessarily in hospital, at huge cost.)
\n\nAnother benefit found was that building such local links ensured the elderly were "monitored" as in an eye was kept on their health and quality of life, and people could be referred to locally available facilities that they may not have been aware of or may have been reluctant to request or attend.
\n\nDefinitely think the time is ripe for new approaches, and also that a new willingness to try these is developing on the part of CCGs, healthcare trusts and local councils. Hopefully this will extend to national government, and they will allow local solutions to develop from the ground up. They are doing so in other health sectors, so there is hope. The CQC - given its very specific mandate and structure - may be another issue! But we can but try!
', u'post_id': 758, u'date': u'2017-02-09 21:04:19'}, {u'user_id': 3545, u'title': u'The catalyst', u'comment_id': 31151, u'content': u'@WinniePoncelet - perhaps it could be taken forward by a group of like-minded individuals pursuing the relevant parties... But seems to need research, making contacts (in local govt., CCGs, financers, etc.) first.
\n\nGiven the way things are going, perhaps we\'ll see this happening sooner rather than later; as you say there is a huge need out there!
', u'post_id': 758, u'date': u'2017-02-05 14:29:57'}, {u'user_id': 3545, u'title': u'Cohousing links', u'comment_id': 30613, u'content': u'\n\nhttps://www.theguardian.com/society/2015/feb/16/co-housing-people-things-common-live-together-older-people
\n\nhttps://www.dezeen.com/2016/12/09/pollard-thomas-edwards-architecture-first-older-co-housing-scheme-owch-uk/
\n\nhttp://cohousing.org.uk/resource/introduction-senior-cohousing
\n\nhttps://www.jrf.org.uk/report/senior-cohousing-communities-%E2%80%93-alternative-approach-uk
\n\nhttp://www.which.co.uk/elderly-care/housing-options/property-downsizing/432093-cohousing
\n\nhttp://www.housinglin.org.uk/Topics/browse/Housing/HousingforOlderPeople/Cohousing/
', u'post_id': 758, u'date': u'2017-02-03 23:01:32'}, {u'user_id': 4, u'title': u'File under "prevention"?', u'comment_id': 30534, u'content': u'@zazie , co-housing for people that are not (yet) in need of personal, direct care makes sense to me. Because:
\n\nIt seems to me the elements to change this up are in place:\xa0financial urgency, social urgency, large crowd of people, successful examples, ...
\n\nIt's interesting then to wonder what still needs to happen for a large scale shift. And who will lead it: citizens, government, private sector, ...? The potential is there and many (business or other) models are possible to tap into it. This calls for a catalyst I think:\xa0a party that is relatively uninvolved\xa0to help accelerate things in the right way, whatever that is,\xa0preferrably by facilitating implementation.
", u'post_id': 758, u'date': u'2017-02-04 21:03:45'}, {u'user_id': 3545, u'title': u'Cohousing', u'comment_id': 29962, u'content': u'@WinniePoncelet -: There are starting to be some cohousing projects in the UK, but these seem to be focused around shared living for those who do not yet need care (aimed at the over 50s, rather than the more senior). It seems people in such projects envisage sharing a carer as they get to the point of needing help. I\'m not sure of the viability of staying in such a place when serious dementia\xa0 or physical ailments start to occur; equally regular medication may require a qualified nurse and preventative care may require qualified staff on hand 24/7.
\n\nAgain, I do think we need to start thinking about things in terms of the housing we are building. We can\'t just keep building homes for young families or "trendy" flats for young single people. We need to seriously consider social housing, mixed communities, purpose-built homes for the elderly, etc. Mixed housing should be mandatory for large-scale new build schemes, and not just a tiny number of "affordable flats" that the developer can negotiate to build in a completely different city (as is happening now in the UK!). Also social attitudes and culture need to move on; young people and families need to see a mixed community as an asset, that can bring wisdom and care for their own children within easy reach, rather than seeing it as something they wouldn\'t really be interested in.
\n\nI\'d listen to my previous post above on the actual issues of budgets, who pays for what when interacting with the powers-that-be, etc. What I can say from these initial cohousing projects is that they\'re a start, but don\'t yet seem to consider serious (legally covered) nursing care.
\n\n(Are you aware of companies like McCarthy and Stone who build retirement homes, by the way? Perhaps schemes like that could be a way to progress the idea of cohousing and start people living together, with care facilities and good environments provided on top of their existing model.)
\n\n(Final thought - have done some volunteer work in a day care centre for adults with learning difficulties before... Perhaps a similar model, with day facilities and night care facilities built separately, or being more intermingled than just nursing home residents gathered in their particular nursing homes 24/7, would be a good idea. Those who were more capable could use cooking facilities, make and create, etc. whilst in their "day environment," and other age groups or people living in the local area could also come and use such facilities / interact / assist? Again, funding would be an issue, especially in our current environment of service cuts and the loss of community centres and other such facilities. However, in the long run, I do think such things could prove to save money by keeping people active and involved. (Been reading something else today on the fact that inadequate checks on the elderly costs the NHS \xa32bn per annum due to resultant falls! So even a weekly visit to a local centre, or some interaction / activity, could prevent such things and incorporate some very simple checks - asking how they are balance-wise, quick check on visual acuity...)
\n\nAgain - the major issue is the fact that we don\'t have joined up thinking, but increasing fragmentation in health and social care. Each individual element is asked to cut costs and reduce facilities, even if that results in massive costs elsewhere...
\n\nI better stop at this point, or I\'ll get political again
Very happy to converse more on this area / subject of health, care for the elderly, cohousing, mixed housing, etc. @WinniePoncelet ,\xa0\xa0@Rossana Torri\xa0,\xa0@Lakomaa @Yannick ,\xa0\xa0and\xa0@Alberto\xa0
\n\nHave copied some links on cohousing in the post below...
', u'post_id': 758, u'date': u'2017-02-03 22:59:31'}, {u'user_id': 3545, u'title': u'Care Homes - The Bottom Line', u'comment_id': 29077, u'content': u'For those in the UK, this programme was excellent! (A VPN may help those elsewhere...)
\n\nhttp://www.bbc.co.uk/programmes/b08c2mlk
\n\nShows how tight things are in the sector, and the difficulty of engaging with CCGs, local authorities, healthcare trusts in all their public / private permutations, budgets, etc.
\n\nThe issue of addressing bed-blocking, specifically elderly patients in expensive hospital beds not being able to be released due to cuts in necessary social care provision (e.g. home visits to check on the former patient, giving medication, or even just checking the patient has all they need in terms of feeding and other basic care essentials)\xa0is mentioned, along with the practical difficulty of addressing it using the common-sense idea of utilising much cheaper\xa0spare capacity in care homes.
\n\nAnother issue mentioned is the fact that people are often going in to care homes later in life, and when they need more care. (It\'s mentioned that residents used to arrive driving themselves to a\xa0residential care home!) It does seem the last resort now, with people hanging on as long as possible in their own homes, even if that means being on their own and struggling with shopping, cooking, etc.; less onus seems to be placed on the positives of being in a shared establishment with other people (company and activities, good facilties, cooking and cleaning taken care of, assistance on hand whenever needed, etc.) Is this reflective of our focus on youth and the "invisibility" of the elderly, our fear of aging and death nowadays,\xa0marketing, the cult of the self and independence, or somesuch?
\n\nProgramme description -: "Care Homes - The care home business is heading for a crisis according to Evan Davis\'s guests in this edition of The Bottom Line.
\n\nThe cost of providing care in this labour-intensive business has increased significantly because of the introduction of the National Living Wage. The fees paid by local authorities on behalf of poorer residents no longer cover the cost of providing accommodation, food and staffing. Care homes make up the shortfall by charging higher fees to privately funded residents. Social care analyst William Laing tells Evan Davis that private payers subsidise publicly funded residents by, on average, \xa38000 per annum. But this is not an option in less affluent areas with a shortage of fee paying clients.
\n\nJohn Ransford of the HC-One group provides care for mainly publicly funded residents. He tells Evan that 24 hour care for the elderly has to be provided for less than the cost of a night in a Travelodge.
\n\nEvan\'s guests believe that the care sector\'s business model is unsustainable. Find out what they think will happen next.
\n\nDr. Jane Townson. Chief Executive Officer, Somerset Care Group
\n\nJohn Ransford, Non-Executive Director, HC-One
\n\nWilliam Laing, Founder and a Director of Laing Buisson, Healthcare Intelligence Company"
', u'post_id': 758, u'date': u'2017-02-03 22:30:45'}, {u'user_id': 4, u'title': u'Difficult...', u'comment_id': 28889, u'content': u'The question is so great because it made me realize I do not know. Not really. I have been to many a conference where high-ranking civil servants are exposed to the trends\xa0and buzzes of the month. But does this information really trickle down to a City Hall\'s office?\xa0
\n\nMaybe @Rossana_Torri can answer this...
', u'post_id': 758, u'date': u'2017-02-05 20:17:43'}, {u'user_id': 3362, u'title': u'Thanks @Alberto . To return the compliment, I ', u'comment_id': 28870, u'content': u'Thanks @Alberto . To return the compliment, I have the feeling answers are\xa0already scattered across posts on the forum and your work as a team.
\n\nWhat are your thoughts on the subject?
', u'post_id': 758, u'date': u'2017-02-04 21:19:25'}, {u'user_id': 4, u'title': u"Deeper than you'd think", u'comment_id': 28831, u'content': u'@WinniePoncelet you have a knack for asking really great question. This one runs deeper than it would seem on first sight.\xa0
', u'post_id': 758, u'date': u'2017-02-03 18:55:13'}, {u'user_id': 3362, u'title': u'Inspiring read', u'comment_id': 28735, u'content': u'Thanks for the headsup @Alberto . Insightful words from @zazie .
\n\nI have a question. There are some practical examples of other possible ways (like the cohousing of elderly and students) that were succesful. How do these lessons find the ears of policy makers? If they do, how often does it get incorporated in policy?
\n\nIt is often the ambition of projects to serve as an example for others to be inspired. Do we need to move up a level; is the example a government needs, one of another government trying a new way of governing, rather than an example of people doing something differently (eg. elderly care). The latter would be \'just a policy decision\', the former would be \'the way in which policy decisions are\xa0made\' and perhaps more relatable to a government?
', u'post_id': 758, u'date': u'2017-02-03 15:48:07'}, {u'user_id': 4, u'title': u'Very helpful', u'comment_id': 28467, u'content': u'Wow, @zazie , thanks a lot \u2013 this is really interesting stuff. Ping @Rossana_Torri \u2013 I think she will resonate with what you are saying (you from the\xa0care home side, she from the local policy maker side), and also can probably offer some of her own experience. Likewise, @WinniePoncelet and @Yannick and @Lakomaa had expressed interest in the policy/care intersection and could be interested in catching up.
', u'post_id': 758, u'date': u'2017-02-01 10:35:59'}, {u'user_id': 3545, u'title': u'Alternatives in care for the elderly', u'comment_id': 27817, u'content': u'Hi!
\n\n(Just as background - have been handling compliance / regulatory issues in a small institution for a while now, in the UK.)
\n\nHopefully, we will see more innovative ways of care develop, especially with the idea of co-living / caring, that can benefit both parties, not just be an act of charity or goodwill / volunteering...
\n\nThe UK Government (and others) are looking at the issue as a major priority, given our aging population as the baby boom generation feed through and medical advances mean longer lives... Meeting the cost is a big debate here, especially in a time of "austerity" and widescale removal of central government funding.
\n\nThere is good reason for the regulatory framework, but the overhead for both\xa0parties (regulatory body and care institution) has become increasingly high and ever-changing, as with many top-down bureaucratic systems. (In the UK the body has gone through some changes after criticism regarding its efficacy , but it was formed from good intentions to stop care providers simply taking the money and "housing" the elderly or needy. There have been issues with maltreatment, theft, poor care, etc., just as there has in other social care areas, so some standards need to be set and monitoring carried out by a third party.
\n\nPart of the issue is funding. Larger premises or chains do lead to economies of scale and can help with staffing (whereas a single, small institution may need to resort to agency staff on occasion - which can be very expensive). The other side of this is that large operators can seem\xa0to get away with things that a small or single premises operator would not, simply as to rebuke them or suspend their activities would result in chaos for service users, never mind the relationships that develop with a large care provider and a local council or\xa0clinical commissioning group. (I\'ve seen examples of large corporates who provide home care services being inspected and noises being made by staff who complain they are not alloted time to travel between appointments, etc., yet nothing seems to be done, despite the obvious failings. I suspect some in\xa0Government aren\'t in a position or of a mind to focus on the service users at the moment, but rather see some dubious measures\xa0as essential cost-cutting / profit maximisation on the part of the corporate body. Another point to bear in mind is the connections between certain politicians, financiers, and industry - as with many sectors!)
\n\nWhat I have seen from my exposure to a small institution is caring staff who are doing a good job and have good, close relationships with their service users. However, they are often distracted or overwhelmed by\xa0an ever-changing regulatory framework, as happens in other sectors such as teaching. Ultimately I would like to see the funding from lcoal councils topped up by central government, and this be accepted as the only way to provide decent care. More flexibility from the regulatory body would also help - allowing for more differences in care provision, especially in smaller, more intimate homes; as I\'ve mentioned this does seem to be unlikely given the current standardised, bureaucratic, regulation and\xa0inspection by\xa0checklist...
\n\n(Equally mixed communities and inter-generational interaction would help, but this is increasingly rare. Housing seems to be led by developers keen to focus on young families who have income to buy new-builds on new estates, and marketing focuses on the younger age groups that go\xa0our and spend their disposable income, hence society focuses around such people. What would help is a societal background that valued the more elderly or mature, for their experience, wisdom and human stories.)
\n\nPerhaps a graduated move towards care premises would be good, whereby a suitable\xa0one could be found in the local community and the potential resident spends some time there to build connections and tie them to existing links in the community outside, rather than that person going through an instant switch involving the sale of their own house and them being suddenly moved in to a care premises. Ideally, children and other family would be near enough to visit and spend time there too, but again we need societal change in this area. We seem to be more keen on housing our elderly relatives in care homes in the UK than say, South East Asia or Southern Europe. More interaction should be encouraged. (I\'ve seen some families who barely see their parents once they\'ve been moved in to a care home!)
\n\nI do feel interaction with local community institutions would also help - retaining an existing GP, interacting with local schools and even nurseries, community gardens, parks and the like - though obviously this would depend on the mental and physical fitness of the person concerned. Fundamentally we still see care homes as a last resort, rather than a good place to be, and a large part of that is due to the lack of community interaction. I see some sheltered or assisted housing, where there are good communal facilities and assistance available if needed, but the person is otherwise living in their own flat or rooms... Such premises could be combined with a more typical care home, so there is a mix of people within the institution, though this could present issues handling medical needs.
\n\nSizes of residential housing is also an issue. Many people now buy new-build houses with small rooms and little extra space compared to older homes, hence there isn\'t always the capacity to bring in an elderly relative. Again this comes back to the issue of housebuilding, supply and demand, selling off of social housing, developers maximising profits by building small homes on greenfield sites whilst ignoring the many brownfield sites or old, disused homes that could be brought up to standard... Nothing in this world is disconnected!
To return to the main points - I do think small care institutions can bring advantages, good personal care and rewarding relationships, but we do need to look at funding in this country. We also need to look at how we consider and treat the elderly in this country. These are big issues, but it is a matter of priority. I don\'t wish to turn this in to a political comment, but the current thinking seems to be aimed at small government, austerity and cutting services and council funding. Sooner or later we will have to accept more taxes if we want good social services.
\n\nI do like the ideas initially expressed at the top of this thread, but it would seem to get these accepted and off-the-ground one would have to push for acceptance from the council, government or regulatory body concerned. I am sure there would be interest in alternative care provision, given the struggles in the sector at the moment, and I\'m sure families of those needing care would be interested in such alternatives too.
', u'post_id': 758, u'date': u'2017-02-01 09:00:09'}, {u'user_id': 104, u'title': u'First do no harm...', u'comment_id': 27642, u'content': u'Thanks Zazie, I appreciate your note of caution. I have heard this from others I have spoken to, and am not about to leap into something blindly. On the other hand, it is clear that a radical shake up will be needed over the coming years so thinking creatively will be desperatley needed. This may include, among other thnigs, challenging the way the CQC thinks and operates.
\n\nAt the moment, we are proceeding slowly and cautiously. I think the principle of "First do no harm" applies - we are not about to go out and buy a load of care homes and think we can instantly transform them. We are working with people in the field and looking for existing homes with open-minded owners\xa0 we can work with.
\n\nIf you want to stay informed, let me know your email address and I can add you onto our list. It sounds like you could add a lot of useful knowledge and experience so I may well want to get in touch at some stage and tap into that. Would that be OK?
', u'post_id': 758, u'date': u'2017-02-01 15:11:58'}, {u'user_id': 3, u'title': u'Good reality check!', u'comment_id': 26959, u'content': u'Hi @zazie and welcome to edgeryders and thanks for jumping in!\xa0I think @Patrick_Andrews above was onto something when specifying their aim is to be inter-dependent, since going in as an outsider could (unintendently)\xa0add to the list of things that are not going as one would hope. Are you working in the British care system..?
\n\nSo if you\'re a corporate actor and play by the wrong incentives the market is looking up, but if you\'re driven by wanting to improve care there\'s only so far you can go in a competitive system? This is quite a straightforward way of putting it, but this is what I understand from your comment. What is your preffered setup then, from those successful "care villages" you mention? Social enterprising of sorts? Relying heavily on community goodwill and basically volunteerism?\xa0
', u'post_id': 758, u'date': u'2017-01-31 17:46:00'}, {u'user_id': 3545, u'title': u'Care Home structure', u'comment_id': 26047, u'content': u'Definitely suggest a test case and liaising with local CGCs / councils... The sector is very heavily regulated by CQC (Care Quality Commission), and the mandatory requirements are quite intense in terms of staff training & numbers, facilities, type of care offered, activities, care planning, health & safety (including prevention of infection - limiting doing "funky" things with premises, unless one works really hard), etc.
\n\nThe idea of making endless profits by shoving people in a care home and doing nothing for them is a myth, as is the idea of private equity jumping in to the sector to clean up... (Look at the spate of the disposals and failures in the sector.) Trust me, as someone with knowledge and experience in the sector, there are a LOT easier ways to make money, especially by pure property plays. WHY would a new corporate go in to such a demanding area, unless they had experience or size advantages / consolidation to bring to it?
\n\nNot sure how you\'d bring in clients;\xa0if council funded, you\'d definitely need to comply with regulations, equally if private you\'d need to comply and attract customers. (Remember the market is competitive and low return, and council-funded clients will barely cover your minimum staffing and food costs.) Perhaps voluntarily attending such an entity would work?
\n\nYes - to the idea of intergenerational interaction and care, yes to more community involvement and interaction for residents; but also yes to actually researching the practicalities involved...
\n\nHave seen good examples of "care villages" elsewhere, especially designed to deal with dementia and Alzheimer\'s cases - shops but no money needed, good levels of interaction, residents free to roam and be independent with staff around to monitor and care but not impose... Such things sound excellent, as do the existing experiments elsewhere with intergenerational care (e.g. students living in care premises and assisting, in return for free accomodation). There is a lot of knowledge and experience we are losing or wasting with our youth-orientated / advertising and spending power-focused\xa0society.
\n\n(I\'d suggest looking up CQC documentation - available online, together with detailed requirements for various levels of care e.g. residential without nursing, residential with nursing, dementia care, etc.)
', u'post_id': 758, u'date': u'2017-01-31 15:23:19'}, {u'user_id': 3, u'title': u'Autonomous, but connected', u'comment_id': 25112, u'content': u'I see, it\'s almost like they could be the care home\xa0version of the Reef!
\n\nYou probably need one great test case and then others in the current system can learn and be modelled on it.\xa0
\n\nVery excited about this, keep close..
', u'post_id': 758, u'date': u'2017-01-24 09:29:12'}, {u'user_id': 104, u'title': u'Inter-dependent care homes!', u'comment_id': 24250, u'content': u'Hi Noemi, in response\xa0 to your post, I would say we want to be inter- dependent,\xa0 not independent!\xa0\xa0\xa0 I guess I wrote the original post in rather a hurry, in response to the Open&Change\xa0 call, so\xa0 it probably didn\'t get it quite right.\xa0\xa0 I see our project as forging some third way between state or charity\xa0 ownership on the one hand, and private for-profit ownership on the other.\xa0 it anyway will succeed is to partner up with caregivers, doctors groups, and other independent care homes.\xa0 I envisage a movement of care homes,\xa0 highly networked,\xa0 helping and supporting each other and yet deeply rooted in their own community. It is a big vision and so we are\xa0 starting slowly
@Patrick_Andrews hello, I was reminded of this post as we are having a conversation on care homes which run on intergenerational care. You might want to have a look here (mentions of other Dutch and American well run facilities too).
\n\nWhat do you mean by independent care homes? From the very little I know about the UK care system, many times services are provided by both NHS and affiliated trust foundations whose status is formally semi-autonomous. Also, many times services are signposted to third sector/ independent organisations, which makes me wonder if you see your new organisation working in similar partnerships?\xa0Do \xa0you want to be independent in status or also in your practice - meaning little or no collaboration with the existing system as it is now? I\'m curious about the positioning, and it can also be relevant for our research. Also ping @Tino_Sanandaji for possible interest in this.
', u'post_id': 758, u'date': u'2017-01-19 14:51:57'}, {u'user_id': 104, u'title': u"yes, you're right Alberto", u'comment_id': 18437, u'content': u'yes, you have understood it well Alberto. Taking land out of private ownership into community ownership is a challenge. In Scotland there is some governent support for this (inspired by the population of the island of Eigg, who bought the whole island from the owner). In time I hope the UK government will become equally enlightened.\xa0
', u'post_id': 758, u'date': u'2017-01-23 21:35:46'}, {u'user_id': 4, u'title': u'Reshuffling the cards', u'comment_id': 17506, u'content': u'Wow, @Patrick_Andrews , I had missed your answer. This is really interesting.
\n\nThe way I understand it, managing real estate in an overheated real estate market like the UK\'s\xa0makes more money than producing care services. Hence the tension of these hedge funds that, as a result of being bottom-line oriented, focus on the buildings and not on the people.\xa0
\n\nThe separation of assets from activities makes a ton of sense. I looked up community land trusts on Wikipedia (https://en.wikipedia.org/wiki/Community_land_trust), and I think I now understand how that might work. It seems to me there is an "upstream" problem: finding the money to take a valuable piece of real estate off the market forever, damn the capital gain. I don\'t see how this can be completely solved. The advantage of the CLT model is that you only have to do that ONCE. Once you have done it, the land is secure (except if the CLT goes bust, but I imagine CLTs are supposed to be very risk-averse). Am I getting this right?
\n\nCLTs might be of interest to @Nadia in view of The Reef.\xa0
', u'post_id': 758, u'date': u'2017-01-20 06:02:48'}, {u'user_id': 104, u'title': u'Separating assets from activities ', u'comment_id': 15711, u'content': u'We have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority.
\n\nIn care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human "resources" and patients as "consumers" of health care services, squeezing the system to extract wealth.
\n\nThis is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having "owners" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to "delivery of health services", which is quite a different thing.
\n\nA useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn\'t otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure.
\n\nTo put it another way, using financial language, owning land has a different time horizon and a different risk profile\xa0 from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That\'s the theory anyhow. \xa0
', u'post_id': 758, u'date': u'2016-09-27 20:52:59'}, {u'user_id': 4, u'title': u'Separate assets from activities', u'comment_id': 8093, u'content': u"This sounds very sensible. I am curious about the separation of assets from care activities. Could you say more about why you think that's necessary?
", u'post_id': 758, u'date': u'2016-09-23 11:22:33'}, {u'user_id': 3, u'title': u'Small LOTE pre-event within another larger one?', u'comment_id': 15138, u'content': u'This is something we cooked with @Alex_Levene and @Natalia_Skoczylas as there\'s a chance we wont get a full package in a city\'s offer - it could be that the event fits with LOTE, or that they have resources, but maybe not so many chances for us to build an ER base there as outcome (base = the Reef)
\n\nThe alternative is a co-produced OpenCare Village pre-event, an Edgeryders + Partner\xa0collaboration for hands prototypes of health/ social care solutions, taking place at a major event. The magnitude for us is up to 5 care projects exhibited or demonstrated - from both our network and locally, and involving people from all over who want to contribute to the work.
\n\nThe budget is split between OpenCare funding which we have already secured for our main event (covers coordination, community management and exhibitors\u2019 recruitment and preparations ahead) and co-funding from partners:
\n\nI have done some numbers for the pre-event only, and it should be around 35K in total, of which half falls on partner.
\nThere is a lesson here for me, and that is - a brand and the hurdles of securing a venue cost, and we can't organise a traditionally free-of-charge event within one that sells tickets. Which is why any partner that we find running a larger event will need to understand the value of what we bring and bend some rules. Understandably, it needs more search.
\n\nThe faster way:\xa0LOTE already has somewhat of a brand attached, which means if we keep on with the focus on community and people working together, LOTE, even in a festival-more-than-conference format, will still not be your usual festival.
", u'post_id': 6119, u'date': u'2017-02-06 13:17:39'}, {u'user_id': 3279, u'title': u'Co-creation', u'comment_id': 26022, u'content': u'@Noemi absolutely will share the developments about how the various communities contributed. With the intent on making it available to everyone on the global scale, we will answer production costs, and acquisition\xa0related questions at a later date.
', u'post_id': 701, u'date': u'2017-02-07 09:03:38'}, {u'user_id': 3, u'title': u'Co-creation', u'comment_id': 24829, u'content': u'Will be looking forward to updates @Maria. I would especially be interested to read about the process of getting communities involved and what their contribution was.
\n\nIs there a business model behind, how will production costs be covered so that more people can acquire Soundsight \xa0(or buy?)?
', u'post_id': 701, u'date': u'2017-02-06 12:47:35'}, {u'user_id': 3279, u'title': u'follow-up', u'comment_id': 23605, u'content': u'Thank you for the comments regarding SoundSight. @Andra Pop The project is moving along at its pace, as much time is dedicated to working with the blind community, as they are part of the co-creation team. There is indeed an initial prototype that has been tested.
\n\nYes, there is a lot of work and research being done to find ways to improve life for partially-sighted and blind people. This software transforms lives for the better and will be available for everyone. \xa0It\u2019s a great step in improving the human race\'s understanding of its own vast and incomprehensible capabilities. There will a follow-up and we will share on the developments.
', u'post_id': 701, u'date': u'2017-02-07 08:41:06'}, {u'user_id': 3331, u'title': u'Comparison with other tecnologies', u'comment_id': 20231, u'content': u'Lovely idea\xa0Maria, if someone was about to give some guidace to one who was about to become blind. How would this project put itself among many other possible technologies:\xa0Second sight artifical eye implant, a system telling what you see in front (cant remember the link) etc?
\n\nIs there an objectiv comparitive review somewhere?
', u'post_id': 701, u'date': u'2016-08-29 09:41:52'}, {u'user_id': 3, u'title': u'I remember the kickstarter campaign', u'comment_id': 14655, u'content': u'@Irene_Lanza introduced us to the project a while ago, and I found it very interesting that while it usually\xa0takes a lot of "manual" training to learn echo-location - basically to hear acutely the echo of the tongue click, this kind of tech mediated approach can speed up learning.
\n\nHave you guys managed to move beyond prototyping? Are results coming along nicely..?
', u'post_id': 701, u'date': u'2016-07-12 14:30:40'}, {u'user_id': 3339, u'title': u'About the article and the idea...', u'comment_id': 7466, u'content': u"The article contains a few phrases I really liked and I would like to express my delight about them. I think of the \u201cCan other senses compensate for sight deficiency?\u201d problem which is asked at the beginning. Also, I think of the \u201ca technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings\u201d thing. This is such a nice, simple and healthy way of talking about the project and building it. I checked the website too and I liked the fact that it says a lot about the project and what's coming next.\xa0I would really like this to extend and I hope to hear more about this in the near future. Thanks for sharing!\xa0
", u'post_id': 701, u'date': u'2016-07-12 09:10:06'}, {u'user_id': 3, u'title': u'Learnings from the pre-unMonastery event?', u'comment_id': 16312, u'content': u'Reading all the latest posts from around Galway I realise almost everyone mentions the event at Cregg Castle from\xa0early December.. very curious what has come out of it? @Bernard @Sarah_Kinneen are there materials posted online somewhere, or a post? Thanks!
', u'post_id': 807, u'date': u'2017-01-26 21:48:00'}, {u'user_id': 3, u'title': u'Design for the Pop Up Village event?', u'comment_id': 7488, u'content': u'@Sarah_Kinneen welcome to edgeryders! I\'ve been to Galway twice last spring and unfortunately didn\'t come across a clothing swap shop or event, but would have loved to! Is there a permanent setup?
\n\nI hope we get to meet soon, you know with an initial team of edgeryders we are dreaming up and doing location scouting for an event this September,\xa0a festival\xa0exhibition to show what communities are designing or coming up with to better take care of each other. It will be a culmination of all these encounters we\'ve been having with groups in Galway, Berlin, Athens, Thessaloniki, Paris, Brussels and others who are doing pretty edgy things in social care and healthcare.\xa0Preps for this event\xa0would involve designing the space so as to host prototypes, demos etc.\xa0Would you be interested to get involved as an active contributor? We have a dedicated discussion group here, feel free to join!\xa0
', u'post_id': 807, u'date': u'2017-01-13 09:56:26'}, {u'user_id': 3528, u'title': u'thanks', u'comment_id': 26965, u'content': u'Thanks Sharon for your encouraging words.
\n\nHope to meet soon.
\n\nAlan.
', u'post_id': 562, u'date': u'2017-01-22 00:26:49'}, {u'user_id': 3533, u'title': u'Undisclosed content ', u'comment_id': 26059, u'content': u'Undisclosed content', u'post_id': 562, u'date': u'2017-01-21 15:55:13'}, {u'user_id': 3403, u'title': u'hi @alan', u'comment_id': 24011, u'content': u'thank you so much for sharing your inspiring story and ideas
\n\nI think your story reflect what I am trying to say with my traumatour: that to be really helpful we should break down the walls between professionals\xa0 patients/clients. Instead we should sit together and share what we know and feel and can do to get better and stay well - as fellow human beings. Holding on to hope together is so much easier dan trying to do that on your own...
\n\nI hope to meet you someday to practice the talking done here
Stay safe,
\n\nYbe
', u'post_id': 562, u'date': u'2017-01-20 08:30:17'}, {u'user_id': 4, u'title': u'Helping others to heal ourselves', u'comment_id': 20042, u'content': u'Hello @alan , and welcome. Thanks for your candor. Question:
\n\nSoon after my initial diagnosis my psychiatrist encouraged me to get involved in mental health advocacy work.
\n\nis this normal? I mean, is this recommended to many people that are diagnosed with mental health conditions?
\n\nBecause if it is, this would make a fantastic pattern of what we call open care. What "open" is about, is that the separation between producers and consumers becomes blurred. In open source software, you help improving the software that you use instead of buying a commercial project. In mental health, you improve your own condition as a patient by becoming a healer yourself. This makes plenty of intuitive sense, and has the additional advantage that it has a very sustainable economic model.\xa0
', u'post_id': 562, u'date': u'2017-01-13 05:37:06'}, {u'user_id': 3, u'title': u'My question to you', u'comment_id': 14475, u'content': u'@alan, I\'m very happy to meet you. I needed a few good hours to read and re-read your post. It\'s one of those things about life you can\'t pretend to understand unless you lived them out yourself. I will say that I am grateful for your openness and honesty.\xa0
\n\nWhat would your advice be for people who witness their acquaintances struggling with a mental disease? Or seeing instability with/ without a medical diagnosis and not knowing what to do to be somehow useful? Because mental illness manifested in everyday lives, \xa0outside hospital premises goes unacknowledged to a too great extent by our communities (maybe Ireland is more sensitive to this..), I imagine and even witnessed it once that the tendency is avoidance or not dealing \xa0with it. If you\'re not a close friend or relative of someone fighting this, the simplest may be to walk away.. Which is a pity because you are part of the same community, and the more support is made available the better all our lives. At least this is on my mind right now. There must be some room between being \xa0a patient and being an advocate or activist..\xa0
', u'post_id': 562, u'date': u'2017-01-12 11:23:14'}, {u'user_id': 2569, u'title': u'Hi alan,\n\nThank you so much for sharing your ', u'comment_id': 7098, u'content': u'Hi alan,
\n\nThank you so much for sharing your experience and your story with us. I found your words enlightening and moving. It\'s great to see that you feel comfortable and confident sharing with us, and that what you are doing with Cosain, GROW and these other areas are not only helping you with the day-to-day steps that are required, but are also helping to improve the lives of others around you in your community.
\n\nMental health has been an interesting topic on Edgeryders during OpenCare. We had/are having an discussion around MH and creativity here:\xa0https://edgeryders.eu/en/under-pressure-on-the-relationship-between-creativity-and-emotional this has also led to an interesting project: https://edgeryders.eu/en/the-shit-show-a-mental-health-awareness-campaign
\n\nIt seems to me that many people are experiencing some of the stresses and strains of MH issues (to varying degrees and levels) and that many of us are missing the knowledge or practice to be able to work through these problems. Perhaps your training and experience can help guide the community towards some practical steps to help with improving MH for all of us.
', u'post_id': 562, u'date': u'2017-01-11 21:10:08'}, {u'user_id': 3, u'title': u'Bine ne reauzim', u'comment_id': 8634, u'content': u'Hei @Lucian nu stiu daca pe edgeryders vei gasi oameni pasionati eCommerce in sensul traditional - poate doar bartere online (sa sustina economii fara bani sau platforme\xa0pentru sustainable consumption, cu un scop non-profit, spre exemplu\xa0dezintermedierea intre producatori si consumatori, dar oricum nu in Ro. Ca sa ajungi direct la grupul din Romania - multi dintre edgeryders din Bucuresti,\xa0cunoscuti tie de anul trecut - poti posta aici.
Looking forward to seeing details of the second generation. If I talk to potential investers I will direct to your site. If there was some blog activity it would be reassuring for investers. Real-life examples of the product being used for diagnosis would also be a plus.
', u'post_id': 762, u'date': u'2017-01-20 12:41:25'}, {u'user_id': 4, u'title': u'Something there....', u'comment_id': 20567, u'content': u'Interesting story, @Yannick . I play computer games a bit myself, and found myself thinking about how the "intergenerational up-levelling" would work. Would the game need to know your age? And register your grandma\'s as a player? And she would "approve" your up-levelling? Gamers have a long tradition of "cheatsheets", and I can very well see someone logging in as gramdma to get the magic sword. If you (the game designer) fight it, then you get into a mess of identity verification...\xa0
\n\nI wonder if anyone has tried to design games where the gameplay itself\xa0favour intergenerational teams. Imagine a detective game where you\'d need to be familiar with both youth-friendly and older generation-friendly cultural references. These can be quite badass: my mother\'s slightly older cousins, who lived through WW2 at the age of about 10, could tell the weapon from the sound of gunfire, or whether an aircraft was doing reconnaisance or likely to bomb their asses based on the engine\'s whine.
\n\nI would have no idea ho to make it interesting to the young kids, though...\xa0
', u'post_id': 783, u'date': u'2017-01-20 05:28:54'}, {u'user_id': 3293, u'title': u'A toolbox filled yes :)', u'comment_id': 14632, u'content': u'the reaction give me the idea to share it with some people that i know organize game jams. It could be an interesting theme for them. Will see what comes out.\xa0
\n\nIt was after the discussion with Lotfi and Alkasem about the elderly that this project popped back in my mind. Not everything can be a success story, but at least can be shared to become a learning moment
..what else have you been involved in over the years Yannick? You\'re carrying quite a toolbox of projects.
I see cowork spaces and hubs going for gaming nights targeted at youth, but it would look even better if they\xa0opened up the participants\' age to include older people - maybe less pc and console\xa0games and more board games? The latter\xa0tend to be more social quicklier. Will keep your thoughts in mind.
', u'post_id': 783, u'date': u'2016-10-07 13:33:54'}, {u'user_id': 3433, u'title': u'wet-the-beds', u'comment_id': 20554, u'content': u'Hi @Michel, I\'ve harvested dandelion root to make a coffee-like drink before, and eaten the leaves and flowers. They\'re said to be good for the liver and in the past it was drunk by farmers, here in Ireland, to help maintain energy during in the winter months. I have no research to back these claims so I avoid using language stating it as fact. In Ireland we call them "wet-the-beds" which may indicate that they have diuretic properties:) They grow everywhere here, but sadly many gardeners see them as weeds and spray them with glyphosates.
\n\nIf dandelion roots were a "cancer cure" that would be great, but I don\'t think the claim is valid without links to clear research. If that research is ongoing that\'s excellent, I\'m excited to hear more.
', u'post_id': 805, u'date': u'2017-01-19 16:09:57'}, {u'user_id': 3340, u'title': u'Research on botanical, and biogas & ecological energy ', u'comment_id': 14143, u'content': u'Hi @Noemi, nice to hear from you that hope send it right back to you.
That\'s right, I have a former colleague a botanist for being exact when I was working in the raining forest on the East of Madagascar whose work with a Professor called Daniel RAMAMPIERIKA. They search and apply on plants and biogas & ecological energy since 2013. The advice on how dandelion\'s roots come from that former colleague. The advantage of this research is we still have pure primary forest and the good positive point is they\'re trying to preserve those forest by researching and working on biogas and ecological energy.\xa0
', u'post_id': 805, u'date': u'2017-01-10 11:43:52'}, {u'user_id': 3, u'title': u'Are your friends researching ', u'comment_id': 6684, u'content': u'Hi @Michel, hope 2017 is looking up for you!
\n\nI missed this story, thank you for sharing it. The only thing I knew about dandelion tea is that it reduces inflammation..\xa0
\n\nIs anyone of you or friends participating in actual research\xa0about this, or at least be under some medical/scientific supervision? I remember @Ivan_Ezeigbo, also on edgeryders, is involved in systematically studying effects of a medicinal plant for another medical affection.. i thought that was a smart way of looking for valid cure.\xa0
', u'post_id': 805, u'date': u'2017-01-09 14:50:47'}, {u'user_id': 3, u'title': u'This story slowly contributed to changing my views', u'comment_id': 26055, u'content': u'I\'m reminded of this take on medicine every time I read others acknowledging\xa0alternative therapies - somehow mediated by different values (human treatment, social medicine, flexibility, group therapy..):\xa0"Success really came for me through trying alternative therapies such as bio energy, acupuncture and reiki." @steelweaver, meet @Sharon_Kinnane !
', u'post_id': 549, u'date': u'2017-01-19 12:40:31'}, {u'user_id': 2551, u'title': u'Not acupuncture but an interesting find about community', u'comment_id': 23866, u'content': u'\n\nWith an anthro perspective it turns out that the most important thing after a hear attack are your friends!
', u'post_id': 549, u'date': u'2017-01-17 14:22:24'}, {u'user_id': 393, u'title': u'Using vs creating community', u'comment_id': 20101, u'content': u'Just linking in @Noemi\'s post on running from a failed medical system in Romania. https://edgeryders.eu/en/when-do-you-decide-that-running-from-a-failed-medical-system-is-no
\n\nOne thing it has brought into stark relief for me is the interplay between using Opencare projects to try to build community [as well as make people healthier], as is often the case with Community Acupuncture projects, and the sort of thing that is possible when strong bonds of solidarity [being poor, being Amish] already exist.
\n\nUnfortunately, in much of Europe, it seems like many people have used rising living standards as a way of stepping out of engagement with community and society - and it is only when economic or other disasters strike that they are forced into connection with one another once more.
\n\nThe best way to deal with the uncertain futures ahead would be for people to start building those localised, horizontal connections beforehand - but the cynic in me suggests that they will always wait until necessity forces their hand.
', u'post_id': 549, u'date': u'2016-11-13 14:02:57'}, {u'user_id': 393, u'title': u'Separating authority from power', u'comment_id': 18817, u'content': u"Thanks for the comment, @WinniePoncelet, and glad to hear you found the cause of the problem in the end.
\n\nYour distinction between authority and power is very useful. The point about different cultures reifying the system vs the person is also very relevant here - the problems around regulation and recognition of traditional acupuncture in the west can basically all be traced back to the original error of accepting the setting of the terms of debate around the technique 'acupuncture' rather than the practitioner.
\n\nIndeed, I call myself an 'acupuncturist' because people are familiar with the term - but a doctor or physio who has done a few weekends training in the technique can also legitimately call themselves an acupuncturist.
\n\nIn reality, I am a 'traditional medicine practitioner' who uses a variety of techniques, including acupuncture. The main point of coming to me is for my knowledge of chinese medicine theory, my diagnostic skill and my years of training in using the needle [or cup, or hand] to effect change in the body.
\n\nAnd there is an additional hurdle to overcome; I am using an unfamiliar medical paradigm and technique that people do not necessarily have trust in [at first] - and I am doing so outside of the usual recognised channels of 'medical authority'.
\n\nSo I have to simultaneously convince a patient of the soundness of the medical approach as a whole and of my own competence - when they may be used to thinking in terms of trust in the system and not the individual.
\n\nThis is why I was keen to have patients provide some of the impetus for engagement themselves - if they waver in their trust of me or the medicine there is no institutional push for them to remain in treatment as there is in mainstream medicine.
\n\nBut evidently part of keeping them engaged is providing that sense of medical authority that they want.
\n\nSo now I'm thinking about how I can generate the kind of reassuring authority I need without falling into the established patterns of power relationships we are used to in the west.
", u'post_id': 549, u'date': u'2016-11-13 13:55:26'}, {u'user_id': 3362, u'title': u'Authority in health care', u'comment_id': 18779, u'content': u'I enjoyed reading your well written post @steelweaver ! I have a rich medical history and although I had a brief run in with acupuncture, I never really went for it. I\'d still like try it out\xa0when the opportunity presents itself.
\n\nIt\'s an interesting remark on the authority of health practitioners @steelweaver and @Noemi . I think the reliance on\xa0guidance by an expert\xa0is in large part\xa0the result of the patients\xa0not being as familiar with acupuncture\xa0as the expert. Yet patients\xa0are there for a reason: at some level, they believe in\xa0the positive potential of the treatment. This common\xa0belief of both parties is the base for authority and\xa0lends you, or the practitioner, as an expert the authority to give direction. Authority governs the interaction and when nobody (or nothing) assumes it, confusion arises. To be clear:\xa0authority is different from power.
\n\nI can complement this with my personal experience in the standard healthcare system in Belgium. For a little over 5 years I had a series of serious physical afflictions, which didn\'t ever seem to heal or resolve themselves and only got worse over the years. At the start I always\xa0left the clinic with a smile, which\xa0always disappeared in days, weeks or months as the situation deteriorated again. I experienced first hand that I was just\xa0a number, and that treating symptoms is faster and\xa0easier. Good thing for pharma companies, because endlessly treating symptoms sells more drugs.\xa0Finding the real cause takes longer, is harder and is more expensive, at least in the short term.
\n\nI got pretty skeptical about the system by going from doctor to doctor and spending more time in physiotherapy than with my friends or family. Gradually I lost belief in the system. It was\xa0after I ultimately found the cause and cure (very simple ones at that) that whatever remained\xa0of my belief vanished.\xa0With that\xa0gone, there was no more common belief between me and the doctor, so the authority vanished. My language can\'t hide\xa0it: I found the\xa0solution, not a doctor or a system.\xa0For this specific\xa0illness, I will not lend authority very easily anymore either.\xa0I\'m lucky, as I have a general idea of healthcare through my studies\xa0and know my body well by now, but this is clearly problematic for the general population when you hear similar stories with unhappy endings.
\n\nAlso interesting that (at least for me) a big part of the authority of the health practitioner is due to belief in the system, rather than a belief in the knowledge of the doctor (which I never really doubted).\xa0I think that might be a western thing, linked to what\xa0surfaced in the discussions with @alkasem23 about differences in care with Syria:\xa0in the west we put our trust in and rely on systems rather than other people. In some\xa0other cultures,\xa0people probably put their belief mainly in a person, the doctor.
\n\nEasier interactions through\xa0the internet,\xa0powerful search engines,\xa0a lot of people sharing experience and stories online, easy access to second opinions (in my country anyway)... Though they don\'t\xa0always provide\xa0correct information, these factors also\xa0lead people to challenge the authority in terms of knowledge\xa0of the practitioner in the classical doctor\'s office. I\xa0think both this challenging of knowledge and the failure of the system will inevitably lead to some fundamental changes in healthcare.
\n\nImportantly, authority cannot simply disappear, the common belief has to shift to something else. Most stories of\xa0experimentation with new methods in the stories here on Edgeryders\xa0share some sort of\xa0community aspect. This\xa0illustrates a shift to lending authority to a\xa0collective rather than a system or a person. The\xa0collective can consist\xa0of patients, doctors or other caregivers and is likely\xa0a mixture ideally. In Syria the collective is mainly the family, according to Alkasem.
\n\nLooking through this lens\xa0of authority\xa0is interesting and can be applied to many aspects of our\xa0daily lives.\xa0The matter is fresh in my head from a Dutch book I just finished reading, which I hope\xa0gets translated\xa0to English. If anyone is interested:\xa0the book builds on work by Hannah Arendt that\xa0you can certainly find
Talk about a slow revolution! It makes sense to me that we\'re hardwired to take univocal instructions more seriously, it shows that the doctor is not doubting his approach.
\n\nPatient-doctor\xa0dynamics in healthcare is probably cultural too - we\'ve heard stories from China where ambivalence or open endedness in medical consultations inspired fear more than confidence.\xa0
', u'post_id': 549, u'date': u'2016-11-03 22:29:46'}, {u'user_id': 393, u'title': u'changes', u'comment_id': 17844, u'content': u"Sure - the venue I was in had a lot of character, but also a steep staircase and difficulties in heating it sufficiently. Turns out there is a community centre on the other side of town that already has a lot of people passing through doing interesting community things. So I'm moving there for ease of access, easier parking and the synergies with other projects.
\n\nI was doing the clinic during the day, but a lot of people had problems getting childcare or said they could not come because of their working hours, so I am thinking I will run it from the afternoon into the evening instead, to give people a chance to come along who otherwise couldn't. The other option would be Saturday morning, which would certainly get people in.
\n\nThere's also a good chance I will be combining forces with a western herbalism school, who will ahve student herbalists prescribing herbs under supervision in the same venue.
\n\nHow my treatments have changed is a little more subtle - one unexpected area is that I was previously attempting to be very 'collaborative' in my treatment style, not pushing people to commit to treatments unless they were self-motivated to do so, leaving it open for them to decide how deep they wanted to go with lifestyle changes etc.
\n\nBut it turns out that people actually want a bit more guidance / authority than that - perhaps this is just the legacy of hierarchical healthcare, that they feel more comfortable with a model that they are familiar with, or perhaps it is actually a greater part of being a therapist than I previously considered; that the nature of therapy is such that you need to have a degree of authority for the patient to productively assimilate the treatment. This obviously raises interesting questions about some of the 'horizontalist' projects featured in Opencare!
", u'post_id': 549, u'date': u'2016-11-03 18:46:52'}, {u'user_id': 4, u'title': u'What else is mutating?', u'comment_id': 15894, u'content': u'Hey @steelweaver \u2013 thanks for this. I went back to your original post: it does explain how you changed your pricing model to adapt it to the CMAC\'s community. But here you are saying you are also changing the business hours, and even the way you treat.
\n\nCould you be more specific, especially on the subject of the way you treat?\xa0
', u'post_id': 549, u'date': u'2016-11-02 23:56:32'}, {u'user_id': 393, u'title': u'collaborative acupuncture', u'comment_id': 11802, u'content': u'Thanks, @Rune.
\n\nYes, I think there could be some very interesting cross-over with the WeHandU-type approach. Notwithstanding what I said in reply to @Alberto below about the need to retain a degree of \'expert-pateint\' hierarchy, I am very interested in exploring the prospects for more collaborative healing.
\n\nIndeed, the nature of Traditional East Asian Medicine is very collaborative already - patients can be given exercises to do, dietary changes, self-moxa kits, or herbal teas that all supplement and reinforce the acupuncture treatment, meaning that they are far more involved in their own journey back to wellness.
\n\nOne idea I had was to supplement the clinic with a once-a-week \'Moxa Club\' where people could come and learn to safely use moxa on each other. Many more people could be treated simultaneously than is possible with just one acupuncturist; if partners, friends or family came together, they could then continue treatments at home; and the overall message - that people should be learning the skills to keep themselves healthy - would be inherent in the model.
\n\nThe BAcC is actually moving funding towards Proof-of-Concept studies for 2017; there might be some scope for creating a project that combined different aspects of Opencare in this sort of way.
', u'post_id': 549, u'date': u'2016-11-03 18:58:42'}, {u'user_id': 3331, u'title': u'CPH', u'comment_id': 8937, u'content': u'@steelweaver, I really enjoyed your article. Your reference to denmark made me think of the The Emperor\'s New Clothes. Are we just renaming old stuff?
\n\nId like to discuss Acupuncture more, \xa0could it be integrated in a OpenCare - WeHandU approach?
', u'post_id': 549, u'date': u'2016-11-02 11:30:40'}, {u'user_id': 3, u'title': u'Have you experienced it personally?', u'comment_id': 26962, u'content': u'Thank you @Maria! I see a great divide starting at the public level - not just elderly as being category in need, but also\xa0usual special considerations\xa0for them seeing pushback by\xa0other people, younger people. For example taking public transportation\xa0at rush hours. Imagine crowded places, everyone wants to get somewhere and people getting territorial - the first to get on the bus, to punch their ticket, to\xa0find a spot to sit down etc, but younger people frustrated that not everyone needs to get somewhere. The discourse I hear in my hometown "but why, older, health sensitive, and complaining as they usually do, why do they take the bus on the worst hour? Can\'t they wait for a 9 or 10 AM?"\xa0\xa0You may think this is a very provincial fight, but so telling to me!\xa0\xa0
\n\nI believe this is a divide which in essence is heavily induced by the very policy discourse - in my country it\'s always been the fight between the leftist\xa0pensioneers favouring party versus the more liberal ones, and elections reflect just that.
\n\nI\'ve yet to see in my immediate surroundings good projects catering to this gap..
\n\nA similar\xa0point was made by @Alex_Levene here,\xa0talking about the ideological conflict we may end up having with\xa0our very own grandparents whose worldviews are frustratingly (and perhaps understandably)\xa0last century.
', u'post_id': 789, u'date': u'2017-01-18 12:36:30'}, {u'user_id': 3279, u'title': u'Intergenerational care is necessary', u'comment_id': 26052, u'content': u'@LotfiAndSelvi \xa0@Noemi Intergenerational communities are indeed necessary to increase social connectedness and cultivate building better living conditions for the older generation. Whether its students living with the care homes and volunteering to have the elderly care for the young, it\u2019s a circle.
\n\n\n\nConnecting generations is not just a "nice idea" I think it\u2019s necessary. For the younger generation who may have not had the presence of grandparents or the presence of older generations creating an influence in their life this is an added value for them, it connects the past, present and future in one conversation. Whether you\u2019re at either end of life- there are similarities.\xa0
\n\nThere are tremendous benefits of these connections. There is a lot of talk to help older people, but perhaps they can help the young. It\'s the experiences of life in a multigenerational, interdependent, abstract community that, more than anything else, teaches us how to be human. The older generation often is faced with isolation- which in turn creates the backdrop for cognitive decline. We all know that. If we can improve the standing of older adults in society, and nurture what they can bring through to the table, then we can achieve a better community with a better quality of life for all ages. With their practical knowledge, some may use the term wisdom, gained from experience, and because they carry with them a whole world lost to younger generation, they may well be our greatest social capital. There are some projects out there, but its a topic craving attention.
\n\nIn the US there is an initiative with this care model called Generations of Hope.
', u'post_id': 789, u'date': u'2017-01-18 10:26:19'}, {u'user_id': 3362, u'title': u'Reminds me of this', u'comment_id': 24001, u'content': u'Hey @LotfiAndSelvi, this reminds me of another Belgian project called DUO for a JOB. Their tagline \'integenerational coaching\' sums it up well: older people passing on their skills to young people with a migrant background. Is that something you envision as well? It might be insightful to talk to them as well.
\n\nIn my home town we have a related story going on. The old movie theater \xa0in the city centre, a beautiful building with a rich history and emotional meaning for\xa0a lot of people, was bought by project developers after bankruptcy. They plan to install service flats where elderly that are still okay can live in co-housing with people who need care, like other elderly or young people with a disability. Yet the whole project has a very commercial smell hanging around it. Do you meet similar stories, is there an impact on the sector?
', u'post_id': 789, u'date': u'2016-10-11 20:37:38'}, {u'user_id': 1485, u'title': u'Intergenerational Care Projects', u'comment_id': 20476, u'content': u'There are a number of\xa0interesting intergenerational care projects internationally - including:\xa0Present Perfect - USA & Fureai Kippu - Japan.
\n\nThe Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.\xa0
\n\nI understand there\'s an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.
', u'post_id': 789, u'date': u'2016-10-11 12:47:36'}, {u'user_id': 3, u'title': u'This is happening in the Netherlands. via the Internets ', u'comment_id': 15200, u'content': u'So the lovely\xa0@CommonFutures has just shared this in response to my tweet asking for help:\xa0Intergenerational Housing in Deventer.
\n\nIt\'s really something:\xa0a project started in 2013 for a new elderly\xa0retirement\xa0home where students pushed back by unaffordable student housing can also live\xa0without paying rent,\xa0and in exchange volunteering 30 hrs of social activities per month.
', u'post_id': 789, u'date': u'2016-10-11 12:04:00'}, {u'user_id': 3, u'title': u'Anyone has experienced co-living with elderly?', u'comment_id': 8168, u'content': u'Hi @LotfiAndSelvi, you say the elderly "are viable resources for the development of our society" - what do you have in mind? Twenty years of working for them must be pretty righ in insights.
\n\nI only know of very sporadic activities that are intergenerational - and most happen around holidays: for example youth taking presents to care homes and spending time with their new grannies for a day or so. It seems to put a smile on people\'s faces, but of course its not substantial, as\xa0what you are talking about.\xa0
\n\nCurious if new (co)living models such as @Simonedb\'s has good news about what can be achieved if generations help each other remain active under the same roof. Are you seeing that Simone or is everyone in your houses still fairly young?
', u'post_id': 789, u'date': u'2016-10-11 05:41:35'}, {u'user_id': 3279, u'title': u'follow-up', u'comment_id': 15148, u'content': u'@Noemi I just read the conversation\xa0you mentioned. I will indeed add my thoughts on the\xa0one in progress.
Thanks @Maria, I wanted to point you to this longer conversation where the Humanitas Center came up too. Do you have any personal thoughts on this that you might share there to the others interested in this topic? It will be good to read you.
', u'post_id': 809, u'date': u'2017-01-15 13:23:21'}, {u'user_id': 3331, u'title': u'Taking it a bit further', u'comment_id': 20131, u'content': u'@Francesco_Maria_ZAVA directed my attention to this very interessting glove
\n\n\n\n@Moushira. Do you think the Maestro be advanced to be similar, but opensource and easyly replicable?
', u'post_id': 512, u'date': u'2017-01-16 12:32:33'}, {u'user_id': 3331, u'title': u'Technology push or demand pull', u'comment_id': 16244, u'content': u'Right on @Noemi :-). The article\xa0made me reflect on two different associations:
\n\n1.\xa0Often we (technicians) get carried away by fascinating possibilities of\xa0technology. Tech becomes interresting in it\'s own right rather than a means to solve a specific problem and @Moushira\xa0has a good start on that. Sometimes it even creates new health problems. Here the\xa0the mouse as a modern a health hazard comes into mind (it\'s provoking RSI,\xa0Carpal tunnel syndrome etc. simply put:\xa0wrist problems). It\'s easy to imagine similar issues.
\n\n2. Some years ago i converted an old\xa0pc mouse into a "finger extensometer". Drilling a hole, springloading the optical encoding wheel wrapped with some fishing line. The line goes out though the hole and\xa0in the other end it was attached to a rubberring. That ring could be put on the e.g. index finger.\xa0
\n\nThe idea was to solve a clinical issue with a tool for the physiotherapist\xa0training fingerextenstion of the impaired hand. (The typical hemiplegic hand after a stroke). Either the user could get a biofeedback when exercising finger extension, or it could be an evaluation tool to keeping track on the progress by providing objective measurement of amount of finger extension.
\n\nIf this \'Maestro\' can do this task and if it is really easy to clone it could be a good candidate for this work (http://ifess.org/node/824). Currently there are some protocols (using expensive movement analysis labs), but if this could be a <50\u20ac DIY instrument for a OpenCare\xa0rehabilitation it could be great.
\n\nAnyone wants to continue the work? Who can make a pilot case study with a patient? (A validation of repeatability,reliability and correlation with a golden standard). \xa0Stuff for an article (https://edgeryders.eu/en/opencare-research/quality-of-life-technologies-an-opportunity-for#comment-24005)
', u'post_id': 512, u'date': u'2016-08-20 22:25:05'}, {u'user_id': 3, u'title': u'What would be even more interesting..', u'comment_id': 8686, u'content': u'..I believe is\xa0learning about if and how people are using it, and whether this can be connected with their medical charts, treatment and advice\xa0in any way. The problem identified by @Rune in his piece would\xa0weigh quite a lot on the way these ingenious and affordable devices are presented as community led solutions:
\n\nThe research contribute with important results, but obviously there is a problem of transferring the research results into the benefit of people with physical challenges - Doctor, could you hack me a neuroprosthesis please?
', u'post_id': 512, u'date': u'2016-08-15 11:33:42'}, {u'user_id': 3333, u'title': u'only for chronic illnes', u'comment_id': 21302, u'content': u'Yes, this is indeed a good solution for getting treatement.
\n\n\xa0But not for surgeries, or patiens coming from all over the country to the main universitary medical center, in the capital of Romania, patiens with special cases who need the most skilled doctors arround them until they have a diagnose.
\n\n\xa0Actually, the current Minister of health, Vlad, is also coming up with solutions to rebuild the hospitals into viable clean insititutions.
', u'post_id': 517, u'date': u'2016-07-28 12:33:25'}, {u'user_id': 4, u'title': u'Why not?', u'comment_id': 17879, u'content': u'I can see it being a solution. Setting up someone with an IV is not rocket science; many people can be taught, and then help their neighbors who were not taught.\xa0Like with defibrillators: the Community First Responders scheme in the UK\xa0teaches people how to defibrillate each other in 3 days:\xa0http://www.communityfirstresponders.org.uk/
', u'post_id': 517, u'date': u'2016-07-27 12:36:17'}, {u'user_id': 3333, u'title': u'Oh, yes', u'comment_id': 16281, u'content': u'Yes, @ALBERTO, there were many times when I was just travelling to the hospital to get my IV and then go home. There are also private clinics where people just go and receive the cytostatics.\xa0Though, for surgeries and patiens from all over the country this is not a solution...
', u'post_id': 517, u'date': u'2016-07-27 09:52:40'}, {u'user_id': 2551, u'title': u'My thoughts exactly', u'comment_id': 11109, u'content': u'funny I saw this post only now.
\n\nI totally agree though - there are a lot of big trends - very many of which would point to moving the hospital to the patient and not the other way around.
\n\nIf Romania has a bad stationary hospital scene, then one could see that as very good conditions to make it a well funded (EU level?) pilot project that looks at devolving care into communities further. Romania has a very strong IT backbone which would certainly help as well.
\n\nSome aspects of such a care system could also be funded from defense money - because mobile care (and operating under overload) are things they have to handle as well. But that is only one aspect.
\n\n\xa0@Sabina_U I am happy to see that people get organized well on the ground. What would be other things you need? Is it fair to characterize the situation as a market failure (on what level(s) are the causes then)?
', u'post_id': 517, u'date': u'2017-01-16 09:31:51'}, {u'user_id': 4, u'title': u'Wow', u'comment_id': 9763, u'content': u'This is a dark, fantastic story @Sabina_U . Thank you for sharing.\xa0
\n\nSo people developed a true phobia of hospitals,\xa0seen as horrible places, dirty and dangerous.
\n\nMaybe Romanians would be more inclined to reverse the hospital model. For many conditions, you do not really need to be in a hospital all the time. If you are going to have to provide food and clean bedsheets for your ailing family member, you might as well do it at home. This leads to a lightweight system, based on clinics rather than hospitals. Are you aware of any attempts to do this?
', u'post_id': 517, u'date': u'2016-07-27 09:39:12'}, {u'user_id': 3, u'title': u'Would smaller organisations have a chance in public tenders?', u'comment_id': 18275, u'content': u'I\'m curious @Rossana_Torri, in the new "economic innovation" labelled tenders, would Dynamoscopio or other similar, smaller organisations with potentially no track record but great ambition and ideas stand a chance? Are those tenders made for social innovators, with them specifically in mind?
', u'post_id': 804, u'date': u'2017-01-15 13:43:33'}, {u'user_id': 4, u'title': u'How policy is born', u'comment_id': 17226, u'content': u'Very interesting, @Rossana_Torri . You offer us a glimpse into how policy makers think: we do things in a certain way, ("hybridization between food trading, restaurants, entertainment, paying particular attention to the quality and fairness of the products"), but this project goes beyond that ("virtuous link between economic value and social impact"). Since the political and administrative are favourable ("after the administrative reorganization in Milan in June 2016 with a new mayor"), we will try to have more people doing more projects like yours ("we can reasonably expect that new opportunities and grants aimed at develop and scale such initiatives will be provided").\xa0
\n\nThis could be\xa0interesting for @Yannick and @WinniePoncelet , who started, elsewhere, a conversation around dealing with government.\xa0
', u'post_id': 804, u'date': u'2017-01-13 13:55:33'}, {u'user_id': 2913, u'title': u'a productive tension between "taking care" and enterpreneurship', u'comment_id': 14528, u'content': u'I\'m very interested in this side of the story...
\n\n\n\nIt seems to me that ML is the result of a true hybridization between \u201cfunctions\u201d, but especially between different types of operators. In a certain sense, the anthropologists that form Dynamoscopio become entrepreneurs, while "traditional" traders become innovators.
\n\n\n\n\n\nWhat I note especially is that ML\xa0is driven by a subject (Dynamoscopio) who took a "business risk" somewhat analogous to traders: in this way business sustainability of ML as a whole becomes a lever for collaboration between Dynamoscopio and the traders.
\n\n\n\nThis is the big difference between ML and most of the projects where the promoters are responsible for carrying out activities/measuring impacts in the local context.
\n\n\n\n\n\nFor all these reasons, ML can be considered a special case in the city of Milan where the revitalization of the neighbourhood markets \xa0(as lot of them have been closed or are not vital at all), has so far been addressed in a more conventional way. In fact, starting from a public tender aimed at reallocating empty spaces and at revamping local markets, some of those markets have been reopened, basically around the idea of hybridization between food trading, restaurants, entertainment, paying particular attention to the quality and fairness of the products (for example \u201czero kilometer\u201d production philosophy). Good examples are \u201cMercato del Suffragio\u201d or \u201cDarsena\u201d.
\n\n\n\n\n\nIn my view, ML goes much beyond this kind of vision and the virtuous link between economic value and social impact is a very interesting and challenging aspect also for the local administration that looks at this case with much interest.
\n\n\n\n\n\nAs far as sustainability is concerned, the political turn of 2011 with the election of new mayor (civic list, left wing) and the new generation of policies that emerged since then are taking seriously the issue of how to support new businesses that are capable to produce social impact, learning from the experiments coming from different types of stakeholders.
\n\n\n\n@erica reover, after the administrative reorganization in Milan in June 2016 with a new major that follows the ideas of the previous one, \u201cTrade and productive activities\u201d are now more linked to \u201cEconomic Innovation\u201d, so that we can reasonably expect that new opportunities and grants aimed at develop and scale such initiatives will be provided.
\n\nThanks a lot to @Erica and the team of Dynamoscopio for becoming part of our project!
\n\n\n\n', u'post_id': 804, u'date': u'2017-01-12 16:35:05'}, {u'user_id': 4, u'title': u'Great work', u'comment_id': 8881, u'content': u'Welcome, @Erika_Lazzarino , and many thanks for the story. This idea of caring for a neighborhood, rather than a person,\xa0was what impressed me when we met in Milano last month.\xa0
\n\nThis story, by the way, might be very interesting for @Khatuna , @Max_Perry ,\xa0@Hasmik and @gazbee_sorour . Revitalizing a public space, protecting it from economic pressure by building sustainability... seems really great. Also, I\'d like @Rossana_Torri \'s point of view of the process as seen from the City Hall.
\n\nI am also intrigued by the ambiguous nature of success in Lorenteggio. The swap markets, you say, were popular, and brought to ML Milanese from outside the neighborhood. This was seen as a threat by the locals. So, it seems, there is no way to win! If people don\'t come, the neighborhood is isolated, economically fragile and ultimately unable to resist gentrification. If they do come, the locals do not like it and push back. Also, this creates tensions among the locals: Luca told me that the shopkeepers were happy to see new people (new customers! yay!), but the local people who are not shopkeepers were upset.\xa0
\n\nSo here is a big question: when caring for a neighborhood, do you think that at some point you\'ll have to take sides?\xa0
', u'post_id': 804, u'date': u'2016-12-21 17:05:00'}, {u'user_id': 3, u'title': u'A story of hope you might enjoy ', u'comment_id': 14594, u'content': u'Heya @Timothy_Daly I thought Alan\'s story is incredible and a resource for many of us struggling or who have struggled at some point in their lives. Here it is, I\'m sure your thoughts on it will be helpful to others reading too.
', u'post_id': 502, u'date': u'2017-01-13 09:17:28'}, {u'user_id': 3, u'title': u'Ways to get out of this?', u'comment_id': 7227, u'content': u'What a story, @Timothy_Daly. Thank you for sharing it with us, and welcome to Edgeryders and OpenCare, our research project.\xa0
\n\nThis really makes you wonder, reminded me of the Rosenhan\xa0experiment.
\n\nThe detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.
\n\nDo you have ideas on how to better the situation for someone like Dave? is a temp squat really doing anything good for him, or what would be a way to recovery that is dignifying? If you\'re involved in or know of systematic community efforts, do tell. \xa0
\n\nIf you\'re more into the research and observation: we\'re struggling to put together a\xa0brief for stories about mental resilience, a set of questions that are\xa0solution-oriented and not intimidate people to share things that after all are very private in an online environment. Help if this is something of interest to you?
', u'post_id': 502, u'date': u'2016-05-09 09:20:49'}, {u'user_id': 137, u'title': u'We have a response from SHA, as expected, ', u'comment_id': 28444, u'content': u"We have a response from SHA, as expected, our message got lost. I will make sure we have some news from them within a week. I also recontacted Lile with a couple of questions and ideas - this is a very informal communication we're having since December. I hope to arrange a call for us for the next week about both the reef and the pop-up village.
\n\nAlso the response to my letters to members of Openandchange was very positive - i will be lining up short discussions with them for the next week.\xa0
", u'post_id': 6086, u'date': u'2017-01-12 12:20:13'}, {u'user_id': 3402, u'title': u'Very bad weather!', u'comment_id': 26927, u'content': u'@Alex Levene we have very bad weather and it\'s almost impossible to drive from town to the camps. I hope next week will be better.
', u'post_id': 6086, u'date': u'2017-01-11 21:52:31'}, {u'user_id': 3, u'title': u'No worries', u'comment_id': 24809, u'content': u'Thanks for the help, and good luck in Greece <3
', u'post_id': 6086, u'date': u'2017-01-12 07:48:47'}, {u'user_id': 2569, u'title': u'Lurking, reading but not much free time', u'comment_id': 23536, u'content': u'Just to let you all know that i\'m very much paying attention and interested in doing what i can to help make all this work.
\n\nI\'m playing catch up with European life and i\'ve got a trip to Thessaloniki (looking forward to meeting @Aravella_Salonikidou) from this weekend so will probably be quiet for a week or so. If there are proofing/editing jobs that you\'d like me to look at drop me an email (like @Nadia did today for the template for hosts) and i\'ll make some time to make that happen. Otherwise i expect to be more available towards the end of the month once things have calmed down a bit with work/life.
', u'post_id': 6086, u'date': u'2017-01-11 20:53:58'}, {u'user_id': 3, u'title': u'[call 11/1] Template partnership letter and upcoming tasks', u'comment_id': 19853, u'content': u'@Natalia_Skoczylas please check the LOTE6 drive where I recommend keeping all our documents for cleanliness. Add there previous documents and resources you have?
\n\nActionables for the two of us:
\n\nI wrote a template invitation drawing from this group description and your previous comms. It needs to be adjusted for each person we contact.. \xa0for cities/ hosts: add more details about the space? for committed partners: add opportunities to shine
\n@Nadia, we can try that - although I am not sure if people want to talk on skype in the middle of their weekends (maybe as it\'s cold outside, they do;)). Let\'s schedule, announce and see how it goes
', u'post_id': 6086, u'date': u'2017-01-03 12:01:48'}, {u'user_id': 8, u'title': u'Contacted Summer Camp in Netherlands re PopUp village collab', u'comment_id': 9329, u'content': u'Did \xa0quick writeup of what we want to do, process etc. (shared doc with you). And have contacted the people I know who are involved in building SHA2017. Let\'s see what they respond
Once we have the location and dates ready, then it\'s much easier to get momentum going. So I will push to make this happen before 9th Jan.
\n\nNext is weekly calls. Got suggestion for day and time that works for you? I think Sat or Sun after 15:00 so also people with normal jobs and US based community members can participate....
', u'post_id': 6086, u'date': u'2017-01-02 22:45:45'}, {u'user_id': 3, u'title': u'Boat clinics for the win', u'comment_id': 7189, u'content': u'Hey, I now think this post may have slipped attention because it doesn\'t have "boat clinics" in its title!
\n\nThanks for getting the story, Natalia. I find it meaningful that while it was one small idea in the beginning, it has evolved into a public program due to involvement of district administration, WB and UNICEF - all of which helped it scale and work out a run-of-the-mill approach.
\n\nI found this telling quote by a gov employee: "The government has the resources and the mandate to create a thousand Ships of Hope that will bring health to people who are at the receiving end of a highly volatile and moody river. We need the\xa0 humility and the willingness to learn from those who know better"
', u'post_id': 708, u'date': u'2017-01-12 08:21:06'}, {u'user_id': 2551, u'title': u"I'd love to discuss this some more", u'comment_id': 8405, u'content': u'I have a background in materials and engineering. I haven\'t done the trip but I spend time outdoors and walk some good distances with my little one, and often thought about the issue.
\n\nI would probably add/change (not necessarily for children though):
\n\ncordage (e.g. paracord, even dental floss or duct tape can vastly improve temporary shelter, duct tape or other adhesive doubles as band aid), some shock cord (elastic) can also be very helpful.
alcohol for desinfection (e.g. the hand wash gel type)
another space blanket (very little weight high utility especially with some how-to, also good as toy), with your background you might find a way to rig it into a jerven bag like thing.
pieces of sleeping pads, probably sized to be large enough to sit on when folded once, becomes more useful with cordage.
Power for phones: booster for charging from small batteries, buck (alternative) for charging from car battery (1 has enough for 200 phone charges), should probably be ruggedized e.g. by dipping in candle wax.
for kids a hand warmer can help out a lot in increment weather (single use)
at temporary camps a rugged bluetooth speaker could really help the kids unwind
maybe replace the gloves by more socks that can be worn on the hands as well
I would recommend 2 caps (beanies that go over the ear) if you have enough
some water bottles have a special kid friendly openings but attach to regular bottles.
In terms of shoes I think slightly oversize croc style (rooms for woolen socks, or maybe inner soles?) are the best minimum stress options.
I am mulling over a system that lets you improvise a "suitcase on wheels" with sticks and cordage. The parts you neet to have of course are the wheels (ideally in pairs, anything from skateboard to scooter will work - they all have 6 mm inner diameter). So this or this would be needed on site. But the two screws that "go in" would have to be replaced by something like 5mm (I think) threaded rod, which would become part of the axle.
', u'post_id': 550, u'date': u'2016-10-30 18:42:50'}, {u'user_id': 3402, u'title': u'Me too!', u'comment_id': 11600, u'content': u'@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered\xa0 to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it\'s more complicate than it seems. The people want to help but very often the misunderstand\xa0 the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word "crocs" and use the word "clogs" because many people thought I\'m trying to advertise them). Especially for this, a woman from a "...welcome" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn\'t ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it\'s easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it\'s ....hard to explain...
\n\nAnyway, the list I have in mind now it\'s going to be ...peace prepared So, I need every tip, tool, trick you know or imagine! We\'ll keep in touch!
Yeah - I can very well imagine the arguments (everybody has a slightly different background, experience, perspective, and very little time to communicate). Thanks a lot for being there for everyone though!
\n\nLet me think out loud about the list a little.
\n\nYou need to give a lot of information in very little time. It is important that it can be understood quickly. It is also important that people understand why some things are better than other things. Here is what I would try:
\n\nTry to use a combination of images and text, a little like a meme. The image is most important (says more than 1000 words) and will ideally explain most of the things that have been discussed in many hours before. Ideally the people who are really deep into the topic do a thorough image search and you pool them together, and then photoshop or redraw. Of course one image (even if it is very good) can\'t explain everything, that is why you need a little text (english, greek, arabic probably). Similar to this (called "exploded view) or this (but so you can photocopy it - so brighter and increased contrast) or this (the words explain the "why" not the item, if it is too difficult use another illustration). You may want to have one page for as a sort of inventory and one page as a sort of manual (e.g. there is a lot you can do with the space blanket that needs a little extra info (maybe Lizzie could also check the list?)).
\n\nSome more things I thought of:
\n\nIt is much easier to get kids to wash their hands while they play with something. Small pebbles or pearls also rub the hands so they get cleaned much better. Kids are big bacteria spreaders. More on hygiene. You can make a sink with the space blanket and duct tape, or an old plastic ice cream package (1L weighs 30g).
for washing clothes you can use the space blanket.
I would recommend 3 (ziplock?) plastic bags with sugar (perhaps with stevia - more weight efficient), salt, and a piece of soap. One bag big enough for this hot water "bottle". Heating or use hot rock or sand.
sterile saline solution (smallest possible), if you need more desinfected water, you can also boil
a comb (or just half)
vasiline (part for real use, but more for "magic cream" placebo effect)
kids earplugs (use alcohol to desinfect!), probably smart to tie in a piece of string for safety.
antiseptic wipes (can be "refilled" with alcohol)
in terms of clothes I would try to reduce cotton. Wool is fine for warmth if you have a windbreaker, if you can have at least one set of synthetic undergarments as they dry much faster than cotton.
personally I love wool leg warmers combined with short wool socks in the outdoors. Socks can be swapped and kept dry without much extra weight. The warmers can be regulated while walking and can be also used in many different ways. I\'m not sure if they work well for kids though.
@trythis thank you! I \'ll study all these carefully! We don\' t do backpacks for the refugees anymore so we focus to backpacks that we can prepare for ourselves or other people and keep them for an emergency. So, we have to think about many diffirent things. For the refugees I\'ve done this:
\n\n\n\nBut this is a draft. It needs something professional with the same style in a platform on line. When somebody wants to prepare a backpack could use specific items and also a list with more details for its item. What is this? How to use it e.t.c.
', u'post_id': 550, u'date': u'2016-11-03 20:54:09'}, {u'user_id': 2551, u'title': u'In terms of materials and organization', u'comment_id': 13409, u'content': u'If you want to upscale cost effectively you may have to look outside of the traditional materials selections. Something that is durable and available at large scale is Tyvek. I have an outer layer for a sleeping bag to make it rainproof which I suspect is of very similar material.
\n\nFor (DIY) backpacks which hold a little more here is an interesting channel: https://youtu.be/q8j051J51O8?list=PLZLagqylZ3j6bLG7hwcwE28Max5Kd9ZE-&t=564 this specific version may also work with the inline skate rolls without too much work.
\n\nRegarding organization I had some thoughts (but mostly focused on immediately after a disaster) which may be more helpful for the refugees to get a little more organized (and perhaps interface with you better). It is a heuristic approach, so it is not intended to produce the optimal or ideal result - but to be reliably better than nothing, and it is mostly information focused.
\n\n', u'post_id': 550, u'date': u'2016-11-03 12:54:57'}, {u'user_id': 3402, u'title': u'Like this! ', u'comment_id': 13452, u'content': u'Like this!
', u'post_id': 550, u'date': u'2016-11-03 20:55:53'}, {u'user_id': 3, u'title': u'You guys made my day. Thanks!!', u'comment_id': 13469, u'content': u'This.
\n\n@Alex_Levene this is the kind of question and expert\xa0input or exchange we\'d want at the hackathon to support refugees in Jan/ Feb!! It\'s pretty awesome, and imagine including all these kinds of info in a curated, structured document for any given question!
', u'post_id': 550, u'date': u'2016-11-03 22:13:30'}, {u'user_id': 2569, u'title': u'Agree', u'comment_id': 13477, u'content': u"This kind of input really is helpful and i can already see a 'Citizens guide to supporting people in an emergency' style document that contains these kinds of ideas and responces.
\n\nThey key will be to get lots of people who have experience of working with refugees already, together with lots of people who have useful experience from other areas of life. Then both sides can bounce off each other.
\n\nI still think that a hackathon like this would be best suited to taking place in Greece or Italy, where the incoming flow is still increasing and there is a high likelihood that another disaster may occur (i'm thinking about the recent Italian Earthquakes).\xa0
", u'post_id': 550, u'date': u'2016-11-04 08:18:35'}, {u'user_id': 2551, u'title': u'Istanbul is very high on my list', u'comment_id': 13483, u'content': u'In terms of earthquake and emergency response. But I agree Italy and Greece are too.
\n\nI\'ve toyed a lot with the idea of having two-stage events, where the travel becomes part of the (optional) first stage. For example if we meet somewhere in/around Athens for the second stage, you can have a distributed first stage start in Izmir (and continue on the ferry to Athens), or on/around some of the airports that fly into Athens (may not be the best example as air travel is very fractured time, unlike train or ferry). Just a thought.\xa0
\n\nAlternatively one could try to do 1-2 prior hangouts where we use Edgesense (and of course human input) to either stirr the pot, or find close matches (as people prefer). If feel like meetings can be far more helpful if we already warm people up beforehand and not go in "cold turkey". Also, people who cannot attend physically can still help with the hangout organizaton - and can try to partner up with an "agent" who will be attending physically.
', u'post_id': 550, u'date': u'2016-11-05 15:52:06'}, {u'user_id': 3402, u'title': u'Thessaloniki or an island', u'comment_id': 13486, u'content': u"Thessaloniki or a Greek island is better choice because people are more involved. And don't forget that is the project I 'm running now. So why, in Athens?
", u'post_id': 550, u'date': u'2016-11-05 22:44:03'}, {u'user_id': 2551, u'title': u'It was only an example', u'comment_id': 13490, u'content': u'It wasn\'t meant as suggestion.
This guide is one of the reasons I decided to establish the assosiation "Cosmus diy" (the bureaucracy part). Most of the people here have experience at Idomeni and still have at the camps. But I think it must be more wide. Not only about the refugees\' wave or about a specific place/country. Maybe a few things can be the same but every place should have a diffirent guide. And then we can map and add people and skills or knowlenge.I also have an idea about the clothing problem and how we can do "smart balls" with clothes anywhere This is more complicated and I think it needs a video.
', u'post_id': 550, u'date': u'2016-11-05 23:23:17'}, {u'user_id': 2569, u'title': u'funding', u'comment_id': 13498, u'content': u'do we think that we could find a funding agency willing to cover some of the costs related to pulling this project together?
\n\nI look around and see many people on here who have 1st hand experience of dealing with crisies and disasters around the globe. I assume all of us could reach out to at least 2 or 3 major organisations who would be interested in contributing to a large scale \xa0useful project like this.
\n\ni wonder if we could approach an organisation like Wellcome Trust as a humanities/health cross over project? What do you think @Bridget_McKenzie? Would this be fundable if we polished up the process and deliverable ideas?
', u'post_id': 550, u'date': u'2016-11-06 09:25:14'}, {u'user_id': 2551, u'title': u'German / EU crisis reaction budget', u'comment_id': 13499, u'content': u'I\'ve used this opportunity to dig into some of the recent German gov publications on such issues, and it turns out that .
\n\n"Die Kommunikation mit der Bev\xf6lkerung ist in Deutschland aktuell nicht Bestandteil von Notfallschutz-\xdcbungen.In den zust\xe4ndigen Beh\xf6rden liegen in den meisten F\xe4llen keine Krisenkommunikationskonzepte vor. Kommunika-tion \xfcber soziale Medien wird bisher nur unzureichend ber\xfccksichtigt."
\n\n"Communication with the population in Germany is currently not part of emergency response exercises. In the competent authorities, there are in most cases no crisis communication concepts. Communication on social media has so far only been inadequately addressed." (this comes from the radiation guys who are somewhat important historically).
\n\nAlso they see the need to coordinate better within the EU as quite simple events (big fire, toxic chemicals released) can overwhelm national stockpiles easily - especially if there were a series of such events. So if the event you plan could include this as a facet, then I think this could be potentially be budgeted. Also, here is a German centered (intl at bottom) list of emergency reaction organizations (mostly centered around "Civil Protection") and some other relevant organizations. If your event allows for it, I could try and see if there are a few that would be interested in dialing in and listening to how your discussion is going. Perhaps they could also answer some questions that may come up.
', u'post_id': 550, u'date': u'2016-11-07 12:22:35'}, {u'user_id': 2551, u'title': u'Check out', u'comment_id': 13500, u'content': u'Potential info or participation:
\n\nhttp://www.polsoz.fu-berlin.de/en/ethnologie/personenliste/voss/index.html\xa0 / https://www.researchgate.net/profile/Martin_Voss3
\n\nand
\n\n\n\nI would expect they could also point out funding opportunities. Perhaps one could divert some anti-terror money to useful activities in resilience?
\n\nA simple way would be to coordinate with some of them:\xa0http://wordpress.katastrophennetz.de/masterstudiengaenge/ for a master thesis project.
\n\nHe was in charge of "cross border support workshop"\xa0 (I\'ll update if I find something English, this is Austrian-German), and works with the gov civil protection.
', u'post_id': 550, u'date': u'2016-11-07 13:54:00'}, {u'user_id': 3402, u'title': u'@Alex Levene when will you visit Greece? Let ', u'comment_id': 13501, u'content': u'@Alex Levene when will you visit Greece? Let me know your plan so maybe I can help.
', u'post_id': 550, u'date': u'2016-12-10 19:16:01'}, {u'user_id': 2569, u'title': u'I have sent you an email.\n\nI would suggest ', u'comment_id': 13502, u'content': u'I have sent you an email.
\n\nI would suggest you remove your email address from the post above to protect your security
', u'post_id': 550, u'date': u'2016-12-10 17:14:27'}, {u'user_id': 3402, u'title': u'Ok! ', u'comment_id': 13503, u'content': u'Thank you!
', u'post_id': 550, u'date': u'2016-12-10 19:15:32'}, {u'user_id': 2551, u'title': u'"Citizens Guides" exist ', u'comment_id': 13504, u'content': u'Of course with some different focus groups and cases,\xa0but "The Citizen" does not exist. So what I\'d think is crucial is the presentation format and delivery method.
\n\nFor example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. "Where there is no Doctor", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term.
\n\nMost documents I know are written in a linear fashion, either for "the general populace" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag.
\n\nInterestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better.
\n\nI think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios):
\n\nCopies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer.
Recording of spoken/played material via phone, perhaps eventually put into writing.
Pencil/coal stick/copy machine copies of simple illustrations/heuristics/nmemonics/ not more than a few lines in most cases.
My suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone/tablet/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific "type" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as "album art" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement "xyz"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.
\n\nAudio has the advantages that you do not need to drop everything you\'re doing, you can do it while walking, and you can do it in the dark.
\n\nIf you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required.
\n\nMy schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course.
\n\nI wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the "professional care & aid circus" can dock into, and many of the respective group\'s fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.
\n\nThe implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you\'ll probably be among them.
\n\nThe simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented.
\n\nMake a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half "upwards" and half "downwards".
\n\n*Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.
', u'post_id': 550, u'date': u'2016-11-06 18:29:55'}, {u'user_id': 3402, u'title': u"I think it's useless to repeat methods from ", u'comment_id': 13505, u'content': u"I think it's useless to repeat methods from the past. We have to think out of the box and create new ways of reaction. We can use all this survival kit lists just for wring/sift and/or update them. The point is not an endless list that nobody wants to read it but to find ways to train the people through their daily routines. And only a few things should be prepared especially for emergencies.
", u'post_id': 550, u'date': u'2016-11-06 21:49:49'}, {u'user_id': 2551, u'title': u'Resilience routines then?', u'comment_id': 13506, u'content': u"I agree that long lists and texts aren't very helpful most of the time (although there may be exceptions, like cities under siege, certain diseases, etc.).
\n\nIf you want to integrate activities that help prepare yourself for an acute or creeping emergency I think in many ways going camping, hiking, or something like the boy scouts are helpful to get people started. Basically you get used to the idea of getting by with less infrastructure. This of course does not address the myriad of other issues you may be facing, which can require quite different preparations.
\n\nThat is in part why I looked at ways of short term organization and info dissemination. The other thing that would be helpful and perhaps realistic for some poeple at least is to try to be able to provide a useful service during such emergencies.
\n\nI would not want to dismiss methods from the past completely. Certainly many of them don't work very well, may be blindsided, or out of touch with realities. So I agree one should not accept them as last word on the issues (and note I may sound more drastic on this if I had seen official approach fail on the Greek Islands for months) - there sure is a necessity for trying out new things. Still official policies often have some useful elements to them (also depends on how far into the past one wants to look).
", u'post_id': 550, u'date': u'2016-11-07 10:33:46'}, {u'user_id': 2551, u'title': u'Smells', u'comment_id': 13515, u'content': u'Strongly scented soap, rosewater, essential oil (careful with skin contact) on a scarf dipped maybe mixed with vasiline could could produce a pleasent or at least effectively masking smell.
\n\nVicks VapoRub supposedly also works as mosquito repellent, as well as medical uses.
\n\nIf you have small things that small you could fix them with a safety pin.
\n\nEspecially for women I could imagine the opposite could also be helpful in some situations: https://en.wikipedia.org/wiki/Stink_bomb
\n\n\n', u'post_id': 550, u'date': u'2016-11-03 15:13:43'}, {u'user_id': 3, u'title': u'Is there any kind of system in the world that could cope?', u'comment_id': 15649, u'content': u'To your first question, I am not too optimistic. What we\'re seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it\'s citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?
\n\nBut I am still amazed at\xa0how you, as an elected municipal councillor in Thessaloniki, prefered to take a step with community as main asset rather than with instruments you had available in your office. Did I get it wrong?
', u'post_id': 550, u'date': u'2016-11-02 10:05:30'}, {u'user_id': 3402, u'title': u"No, you didn't!", u'comment_id': 17714, u'content': u'@Noemi, thank you for mention @Matthias! I found his post very usefull. More pieces for my puzzle!
\n\nAbout the ...hot stuff as an elected person I\'ll be back tomorrow. I think I have to explain a few things about the reality here in Greece.
', u'post_id': 550, u'date': u'2016-11-02 23:22:21'}, {u'user_id': 4, u'title': u'I want to know about this too!', u'comment_id': 18440, u'content': u'Huh... @Aravella_Salonikidou , I managed to miss that you are a councillor. So yes, I am very much looking forward to the whole story.
\n\nIn\xa0passing: I think we are looking at diversity trumps ability. When an activist-designer-manufacturer like you, a material scientist like @trythis and an open source hacker like @Matthias get on a task, it acquires incredible depth. I am reading your lists and thinking not only "how generous!" but "how clever!" and even "wow, this is cool".
@Aravella_Salonikidou know that I haven\'t forgotten about this pending conversation about how the\xa0public administration and your more official hat helped or not\xa0your project. I would think you were\xa0ideally positioned to lead such a campaign with greater speed than other self-organised initiatives.
\n\nBecause the role of\xa0administrations keeps popping up in many conversations in opencare, with the city of Milano we are now launching a campaign to understand how well meaning public servants and their office can collaborate,\xa0support or even set up better regulations endorsing community projects like yours and the others we know. Would you be interested in participating with a story? We could do it like this - organising a chat where you meet @Franca who\'s part of the\xa0Milan\xa0team, and other edgeryders\xa0who are interested in this. And then we put together in writing the most interesting\xa0ideas from that chat. I\'m happy to join you.
\n\nThe challenge is\xa0here, have a look and let me know what you think? (we\'re still polishing the wording, but it should give you an idea..)
', u'post_id': 550, u'date': u'2016-12-13 09:51:21'}, {u'user_id': 3402, u'title': u'I was thinking about that...', u'comment_id': 18798, u'content': u'@Noemi @Alberto (and everybody else...) all this time I was thinking how I should answer this\xa0question. I hate it when I have to complain about something. So, I\'ve done a sketch to help me explain what happens here. I\'ll post it soon. And of course I want to participate! These days I have a personal problem but I hope next week I\'ll be ready to involve.
', u'post_id': 550, u'date': u'2016-12-13 20:18:55'}, {u'user_id': 3, u'title': u"It's ok, we can wait a few more days of course!", u'comment_id': 18893, u'content': u'Take the time you need, @Aravella. I look forward to supporting the writing in any way I can. Thank you for keeping this in mind, I think it will be important, especially one year into this opencare thing and given our plans with the PopUp village as a potential bridge between cities and citizens.
', u'post_id': 550, u'date': u'2016-12-13 20:48:41'}, {u'user_id': 3403, u'title': u'I am very moved by your story and ', u'comment_id': 20831, u'content': u'I am very moved by your story and I like the idea of including \'a wish\' in every backpack so much. It reminds me of this project: https://www.facebook.com/weshallstandforlove/ of a fiend or me in Brussel: Dorothy Oger wrote the poem We shall stand for love in the aftermath of the Brussels terror attacks, and then the poem went viral and was translated in many many languages and now it is distributed for free on postcards with enough space to add a personal message;
\n\nI allways have the poem with me to pass it on to friends, refugees,...
', u'post_id': 550, u'date': u'2016-11-02 11:36:04'}, {u'user_id': 3402, u'title': u'@ybe the wish was one of the', u'comment_id': 22175, u'content': u'@Ybe the wish was one of the most important things in the backpack. We didn\'t send them without\xa0the wishes. And it was so powerfull and emotional. You can\'t imagine what kind of wishes little kids can send! Most of the time my eyes were filled\xa0with tears...\xa0
\n\nThank you for telling us about the poem. Amazing idea!\xa0
', u'post_id': 550, u'date': u'2016-11-02 23:52:46'}, {u'user_id': 2551, u'title': u'Notes to self', u'comment_id': 24595, u'content': u'Thermosflask improvements (big & glass)
Hot air pump for sleeping bag
\xa0 @Aravella_Salonikidou I just saw the images of people waiting in line in the snow and thought that this is horribly inefficient and I think degrading.
\n\nYou\'d only need an improvised ticket system and people could stay out of the bad weather unless it was their turn.
\n\nThere are many ways and materials to improvise these from (https://en.wikipedia.org/wiki/Salt_dough ASIN B00O0PRFHM paper or clay (perhaps "non-firing") and number punches ( B01M1VBFNS )).
\n\nThe only thing you really need are the number punches. With them you can quickly improvise a (reusable) ticket system.
\n\nThe details of implementing it can be all kinds of ways - not necessarily a first come, first serve. What I could imagine works fairly well is having a clock-like indicator which groups of tickets are called for when, and if available a loudspeaker that can also call things out.
\n\nOne nice thing about the fimo stuff is that it is pretty easy to mix in a unique way, so making fakes is very difficult. And you have to look closely to see the number on it, which reduces fighting for the "best numbers" (you also do count downs vs count ups).
\n\nA pack of 570g can easily be made into 570 tickets. Cost per 1000 such long lasting tickets would be around 30 EUR.
', u'post_id': 550, u'date': u'2017-01-11 09:48:01'}, {u'user_id': 3402, u'title': u'Camps', u'comment_id': 26963, u'content': u"We don't have contact with the refugees anymore, the camps ate far from the town and nobody listens to any ideas. So, the only thing I can do it's to keep it for my list. It's difficult to explain the situation here...
", u'post_id': 550, u'date': u'2017-01-11 21:44:36'}, {u'user_id': 2551, u'title': u'Soft robotics is very interesting overall', u'comment_id': 6954, u'content': u'Be it inflated or just rubbery soft (silicone is a great material to play with at home!).
\n\nOne particularly interesting aspect is that it uses a different engineering paradigm I dare say. Usually things are treated as broken if they deform (past an elongation of 0.2% typically). If you look at the majority of what matters on this planet - deformations (sometimes quite large) are the norm!
\n\nThe reasons there is such a difference in approaches is to a large degree historical and does NOT make much sense for very many applications. In fact prothesis are a nice example of the old paradigm hit the wall pretty bad:
\n\nIf you replace a bone (which is pretty soft compared to what we usually design for in the engineering world!) with a much "stiffer" (technical term) artificial limb and you now jump with such a replaced bone things don\'t end well. While the artificial limb can (and does) take higher stresses - their neighboring bones typically do not - and eventually are wrecked.
\n\nFly feet, cockroach feet, gecko feet are also utterly fascinating subjects if you delve into them!
', u'post_id': 5136, u'date': u'2017-01-11 09:13:13'}, {u'user_id': 3, u'title': u'Makes sense..', u'comment_id': 29547, u'content': u'It\'s become clearer that homelessness correlates much more with inequality (especially affordability in housing)\xa0than with a country\'s\xa0wealth, which is what might explain\xa0cultural shocks\xa0as one moves from east to west.. I\'m reminded of a friend of mine studying in the US who simply couldn\'t get past having seen so many people living in the streets in\xa0San Francisco.
\n\nI would be definitely interested to read about the specifics of family\xa0dynamics in Laos, so if you ever find the time do go for it.
', u'post_id': 790, u'date': u'2017-01-09 20:11:44'}, {u'user_id': 3362, u'title': u'Family in Laos', u'comment_id': 29080, u'content': u"During my short time in Laos, I couldn't help noticing analogies to this story. If anyone finds this useful, I can\xa0try to condense some other impressions and stories from Laos.
\n\nI ever only saw one beggar. He was a physically disabled man, unable to stand, having to crawl\xa0through\xa0the streets. At different times I saw him receiving food from the small food stalls on the street.
\n\nI had befriended\xa0a local woman, let's call her Babs,\xa0through a common friend and I asked her about this man. Babs\xa0immediately knew who I meant. She said that there were not many beggars and homeless people\xa0in Savannakhet, a city of 120,000 people and second largest city\xa0in Laos. There used to be many people asking for money on the streets a few years earlier.\xa0Most of them came from large, poor\xa0families outside the city. One or two family members would go to the city to beg and send some money back home. Recently, the local government chased those people away back to the rural areas.
\n\nThe\xa0reasoning was\xa0that the families\xa0were able to sustain themselves growing crops on their small piece of land, so they should not come begging in the city. Responsibility to take care of each other rests\xa0on\xa0the family. This is the situation for most of the Lao: they can sustain themselves but they have almost nothing more and live in poverty. Begging in the city is one of the ways out.
\n\nBabs said that now, there only remain a few homeless people\xa0who have mental or physical disabilities and no family to rely on. In other words, those who have no other options. The police condones them and they are usually helped by the community, like getting food from food vendors.
\n\nBabs mentioned that there were plenty of mentally and physically disabled people\xa0due to a poor medical system, pointing out especially the issue of giving birth in rural areas. Most of them are cared for by their family.
", u'post_id': 790, u'date': u'2017-01-08 11:29:33'}, {u'user_id': 4, u'title': u'Important point! ', u'comment_id': 28468, u'content': u'Excellent point, @Alex_Levene . This could be fundamental to the opencare vision.\xa0
\n\nWe propose that communities are good candidates for being caregivers, because they are fair (they share the burden across individuals), efficient (allocation of who takes care of whom is based on self-selection: low overhead, you give care when and where you are readiest/most motivated to do so, receive it in the time and domain of your greatest need), and retain a human touch that state-and private sector provided care cannot (you care for your own, etc.). This is predicated on\xa0the givers and receivers of care recognizing each other as one: everyone is part of the same "we". When a person is recognized as\xa0not\xa0part of the "we", the community\'s incentive to care for her fails.\xa0
\n\nAnd it would be unwise to put it down to human error or happenstance.\xa0Some scientists argue convingly that for humans to divide between "us" and "them"\xa0is innate, because in our hunter-gatherer past we evolved under selection pressure at the group level. A full argument is made by E.O. Wilson in The Social Conquest of Earth. Thanks to @WinniePoncelet for recommending the book to me.\xa0
', u'post_id': 790, u'date': u'2016-11-13 13:57:46'}, {u'user_id': 2569, u'title': u'Intergenerational divide in our politics and world view', u'comment_id': 27819, u'content': u'Politically, we can see a large divide in the aspiration and acceptance of \'outsiders\' between the generations.
\n\nMy Grandmother (and many thousands her age) have become increasingly conservative in their world view. From what i can gather, their experiences growing up straight after WW2 in a culture that still had lots of echoes of the wartime propaganda left an indelible mark on their attitudes to the outsider.\xa0
\n\nI grew up in a multi-ethnic society, with children from multiple places around the globe. To me, there is no fear or mistrust in seeing people from other ethnic backgrounds around me. But for my grandparents, there is a lingering Nationalism, a lack of acceptance of \'otherness\' - socially, sexually, racially. Brought up in the social strictures of oost-war Britain they reject the social liberalisation that they have lived through. One could argue that they didn\'t really get to experience the full force of the social liberalisation. Many married young and had children young, many women stayed as full-time child carers and had little interaction outside of the home. Many had large families in the models of their parents before them. Their children have experienced the social liberalisation fully (sexual revolution, oral contraceptives, relaxation of the divorce laws), they grew up with a few non-white faces around them because of Windrush (immigration to UK from newly Independent West Indies) or from Indian sub-continental immigration before and after Partition. Their children (my parent\'s generation) were also the first people to truely benefit from the way that membership of the EU opened up travel around Europe and the North African coastline. They experienced the realities of live in other countries and these experiences changed how they think. My grandmother has never been outside the UK in her entire life.
\n\nNow, at the point when she is starting to struggle with self care (and here i definitely agree with @johncoate \'s view that there is a stubborness and irrational sense of personal independence in their generation) more of the balance of looking after her falls on her kids, whose lives have been so different from hers.
\n\nMy point then is a difficult one to conceed. Although my grandmother is my family and helped to raise me, i find spending time with her very difficult. Her views are borderline racist at times, her attitude to the world is very negative, her experience is narrow and her opinions old fashioned. I am expected to show respect and deference to her based purely on the fact that she is older than me, yet i know my experience of the world is richer and wider than hers. I wouldn\'t want to be forced into living in that straight-jacket in order to reduce care costs.
\n\nI do think that there are some positive ideas coming through around intergenerational living though. It\'s not that i\'m intrinsically against \'old people\', i think the irony is that i\'m not especially fond of MY \'old people\'. I would be more than willing to help look after a number of more liberally minded old people. It comes down the idea first put forward in the Open&Change discussion in HuisVDH\xa0
\n\n"Free, but alone." vs. "Belonging,\xa0but coerced"\xa0
\n\nFor me, i\'d rather free and alone. But i can also see the attraction of belonging. But not the coersion.
\n\nPerhaps this strength of intergenerational bond in Middle Eastern culture is down to having a more cohesive and\xa0consistant\xa0view of the world than we have in the West. Our horizons have expanded to include views about social and personal freedom that still struggle to gain ground in more conservative cultures.
', u'post_id': 790, u'date': u'2016-11-13 10:05:49'}, {u'user_id': 4, u'title': u'A third model: "elderly peers"', u'comment_id': 26050, u'content': u"My mother is now fairly old (she was born in 1937). Women in the family seem to have good genes, though, and she, her two sisters and some female cousins in their late 70s and early 80s are still quite formidable. They are also close to one another. So, my mum does have another option, which is to move in with her sisters. This is not as crazy as it might sound, because by pooling their forces they can hold out much longer than each one of them in isolation. Also, they would probably find this psychologically less disempowering than having to fall back on us, because they would help each other rather than being only on the receiving side.\xa0
\n\nLike in John's description, my mother and her sisters and cousins are fiercely independent and would absolutely loathe becoming dependent, even on us.\xa0
", u'post_id': 790, u'date': u'2016-11-03 12:18:19'}, {u'user_id': 2915, u'title': u'Elder care and big generations', u'comment_id': 23372, u'content': u'My 1945-1960\xa0"boomer" generation is now heading into retirement, fixed incomes, scant savings and other common attributes. \xa0This has always been the case with elders as a whole, but with my generation and my kids\' equally large "millenial" generation, the sheer numbers of people needing care are about to go sharply up and remain there for decades.
\n\nIn the USA, the fabled land of plenty where you are free to succeed and also free to fail, statistics show that the average life savings of my generation are barely enough to sustain them (us) for a year in anything like the standard of living now enjoyed. \xa0And that stadard is lower already than our parents\' WWII generation that was both smaller and wealthier, with a vastly larger middle class. \xa0Then\xa0what will become of everyone? American Social Security is robust now but without a lot more\xa0care and feeding from a unified nation,\xa0it won\'t stay that way. \xa0And the cost of urban living is going up fast all over America. \xa0Sending seniors out to the country where the health care is worse and one has to drive everywhere isn\'t an answer.\xa0At least seniors in the USA have Medicare, but that alone won\'t cover the total cost of health care. \xa0
\n\nI think we are going to see a shift towards the generations recombining inoto\xa0households and compounds in the coming years. \xa0The "generation gap" that very much existed for my generation and my parents was, and still is in a way, much greater that what we see with my gernation and my kids. \xa0I have four kids, all well into adulthood. \xa0Two of them let me know regularly that they are open to us combining households in later years. \xa0Getting my own mother to agree to such a thing with me or my brothers is like pulling teeth.
', u'post_id': 790, u'date': u'2016-10-19 16:38:56'}, {u'user_id': 3, u'title': u'Choice is important', u'comment_id': 21658, u'content': u"Interesting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is.\xa0The impossibility\xa0seems to be\xa0in our inability to provide deeper care when people fall through the cracks -\xa0if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her/himself. \xa0I see people coping at most, because there is no real\xa0choice and assessment of the situation outside constraints.\xa0
", u'post_id': 790, u'date': u'2016-10-19 10:15:44'}, {u'user_id': 2915, u'title': u'It may be generational too', u'comment_id': 21579, u'content': u'Speaking as an American at the\xa0age when living parents are all advanced seniors -\xa0and many of those seniors live in homes and facilities,\xa0while it can be said without danger of over-generalizing, that to many in my age group, having your late-age senior living with you is seen as an inconvenience. \xa0
\n\nBut I think at least when it comes to that WWII generation in the US, a very large number of them want to keep their independence as long as humanly possible. \xa0They don\'t want to live with the family and they don\'t want to cede authority over their "space" to any of their kids. \xa0So, it isn\'t all neglect and self-interest. \xa0I know a lot of people my age who have parents who don\'t want to move in, or they do it as a kind of last resort. \xa0
\n\nThe ones who do, and take on a role in the family that I think is more like the model Alkasem describes, seem pretty happy though. \xa0I admire it. \xa0
\n\nWhen I was younger living in San Francisco which has a very high Asian population, it seems like all of my asian friends had an elderly relative, usually a grandparent, living in their house. \xa0Every time I went over to this one friend\'s house in Chinatown, granny was always in the kitchen cutting up vegetables or something. \xa0I would see that and think, "that isn\'t gonna happen at my house." \xa0Neither generation wanted it.
', u'post_id': 790, u'date': u'2016-10-18 16:49:43'}, {u'user_id': 3, u'title': u'A quote on wealth, consumerism and the real needs we try to meet', u'comment_id': 18807, u'content': u'To me what @alkasem23 is saying has more to do with the way we spend our time and attention, the everyday decisions we make, of which many are more artificial than essential. Not to generalize of course, but materiality is definitely what makes today\'s West as far as I\'m concerned.
\n\n"Why, then, if expensive things cannot bring us remarkable joy, are we so powerfully drawn to them? Because of an error similar to that of the migraine sufferer who drills a hole in the side of his skull: because expensive objects can feel like plausible solutions to needs we don\'t understand. Objects mimic in a material dimension what we require in a psychological one [] Our weak understanding of our needs is aggravated by what Epicurus termed \'idle opinions\' of those around us, which do not reflect the natural hierarchy of our needs, emphasizing luxury and riches, seldom friendship, freedom and thought." -\xa0Alain\xa0de Botton, Consolations of philosopy.\xa0
', u'post_id': 790, u'date': u'2016-11-13 11:32:57'}, {u'user_id': 2551, u'title': u'First world problems, first world opportunities...', u'comment_id': 18613, u'content': u'There are heaps of literature how this splintering and individualization of society allows for a reorganization that allows modern industrial society to operate much better. Of course if one sees many of the problems industrial society brings with it, a case could be made that we\'ve partially overdone it, perhaps to the detriment of our (and other peoples) health and our environment.
\n\nRegarding "What am I going to wear today?" - this is a very old story. It dates back many thousand years, and huge investment into clothes and especially ornament can be found with many hunter & gatherer cultures.
\n\nBut I am sure the subtle and not so subtle differences will start a lot of thought processes about things you\'ve until now taken for granted. In Marseille I see quite different approaches to dressing and style whith street scenes looking quite different depending on day of the week or time of day. I find it quite interesting but don\'t spend much time on this myself.
', u'post_id': 790, u'date': u'2016-11-12 10:41:50'}, {u'user_id': 3, u'title': u'Yuck, first world problems..', u'comment_id': 18580, u'content': u'.. is what @Matthias would probably say. Worrying about those things doesnt seem like the best use of our time, I agree.
', u'post_id': 790, u'date': u'2016-10-19 09:40:09'}, {u'user_id': 3465, u'title': u'Hi Noemi', u'comment_id': 18095, u'content': u'me I think the issue is more simple , in the middle east we say we live in a big families because it is more warm , inherited consensus make it so easy , trust me , in Syria I never worried about what I,m gonna eat , who,s I,m gonna spend time with ( because of the agenda of duties for people , neighbours , family ) , I started to wonder about that only in europe
Having met you in Brussels made me really grateful,\xa0@Alkasem
\n\nI wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about\xa0children moving\xa0away to become independent is true, and so living\xa0with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..\xa0
', u'post_id': 790, u'date': u'2016-10-14 13:51:00'}, {u'user_id': 3465, u'title': u'thanks Alberto', u'comment_id': 12087, u'content': u'..I really don,t know I was born and I raised up like this untill we don,t think about it , belive me when I say : I started to wonder about those things here in Europe
', u'post_id': 790, u'date': u'2016-10-18 16:16:15'}, {u'user_id': 4, u'title': u'Trust', u'comment_id': 7704, u'content': u'How can we create a better health system if we need all kind of difficult systems to create the trust that isn\u2019t there really?
\n\nWow, @Alkasem , this is a\xa0really interesting take on things. I agree 100% with you on this.\xa0
\n\nI never lived in the Middle East, so I do not have your experience. But it doesn\'t look like the West lacks trust. All our societies run on trust; and normally such trust is rewarded, because we are rule-abiders: we stand in queues, show up for work and at school (resaonably)\xa0on time, and do not really cheat. Cheating is quite rare.
\n\nSo: can you say more about the lack of trust you see? What is it that is done differently in Syria?\xa0
', u'post_id': 790, u'date': u'2016-10-07 21:35:37'}, {u'user_id': 2201, u'title': u'An example in Armenia', u'comment_id': 27794, u'content': u'Here\'s an example of "community approach" to mental health care in Armenia. It is a tiny drop in the sea but still I am excited to know it exists here, even though it\'s rather a "provider vs vulnerable group" approach as\xa0\xa0@Alberto put it. \xa0
\n\n', u'post_id': 5658, u'date': u'2016-12-26 14:55:40'}, {u'user_id': 3, u'title': u'This is more about shared learning imho', u'comment_id': 25297, u'content': u'This thread is part of an effort of arriving at the right questions to\xa0reveal\xa0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\xa0
\n\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..
', u'post_id': 5658, u'date': u'2016-05-23 08:50:18'}, {u'user_id': 4, u'title': u'I guess', u'comment_id': 25283, u'content': u'Following @kate_g\'s train of thoughts, they exist but they do not listen. They say the wrong things. They try to "fix" people. Is that so, Kate? I have no experience of my own to contribute.
\n\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the "solution provider" and someone else as the "vulnerable group in need of help"?
', u'post_id': 5658, u'date': u'2016-05-21 18:49:00'}, {u'user_id': 2915, u'title': u'Questions', u'comment_id': 24665, u'content': u'If you Google "mental health support group" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I\'m missing something). \xa0If you add "online" to that you still get relevant results, though far fewer.
\n\nMy question then is, how would what\'s being described, or at least hinted at, here be different or perhaps better than what is already going on. \xa0Or, how can the exisiting activity be supplemented or improved? \xa0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \xa0\xa0
', u'post_id': 5658, u'date': u'2016-05-21 15:30:29'}, {u'user_id': 2569, u'title': u'"that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved ', u'comment_id': 21365, u'content': u'"that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved in processing the emotions experienced in\xa0that place"
\n\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.
', u'post_id': 5658, u'date': u'2016-05-19 15:15:54'}, {u'user_id': 3, u'title': u'Slow burning too. How else re: emotional health?', u'comment_id': 19040, u'content': u'Yours is already\xa0a very useful contribution @kate_g, thanks so much. It signals we\'re on a good track - that we need\xa0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\xa0conversations + structured/ generic/ maybe even\xa0ritualized format of fostering exchanges.\xa0
\n\nYou mentioned\xa0Geneva and\xa0therapy work, and\xa0reminded me to also include @Kaja in this conversation, who was/is(?)\xa0working there and looking into alternative therapy practice.. Kaja, curious if you\xa0have\xa0tried\xa0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\xa0can borrow things that work in the professional practice? \xa0No need to reinvent wheels if there\'s good stuff already there.
', u'post_id': 5658, u'date': u'2016-05-21 08:27:59'}, {u'user_id': 4, u'title': u'Did this fall through the cracks?', u'comment_id': 18827, u'content': u'@kate_g I made a mistake in mentioning you, so that the platform did not send you the notification. I was wondering if you had the time to consider my tentative summary above... Thanks!\xa0
', u'post_id': 5658, u'date': u'2016-12-16 10:24:26'}, {u'user_id': 4, u'title': u'Ok...', u'comment_id': 18782, u'content': u'Ok, so here\'s the intuition I see in your comment, @kate_g.
\n\nIs that it? If so, it is quite actionable, therefore powerful.\xa0
', u'post_id': 5658, u'date': u'2016-05-21 08:23:01'}, {u'user_id': 2754, u'title': u'I don\u2019t know - I\u2019m open - I ', u'comment_id': 18565, u'content': u'I don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.
\n\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \xa0
\n\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.
\n\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.
\n\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\xa0
\n\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\xa0http://byzantium.chroma.space/about/\xa0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\xa0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\xa0equal relations and shared experience feels like a stronger emphasis: designing systems for\xa0"live", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\xa0to hold together around\xa0the varieties of experiences endured on this earth.
', u'post_id': 5658, u'date': u'2016-05-21 01:20:40'}, {u'user_id': 4, u'title': u'I barely grasp it...', u'comment_id': 18068, u'content': u'Well met again, @kate_g! This is a hell of a comeback.
\n\nThere seems to be a deep intuition here. "Something about the experience of another person..." this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one\'s own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\xa0mental health so far, not really.
\n\nWhat I don\'t understand is: are you thinking around some online space for this?\xa0
\n\nWait, what? Nepal? Now that\'s a coincidence
Ever since the election in the UK I\'ve been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\xa0of what do you long for in the place where you live?\xa0I\'ve been\xa0trying out different ways of\xa0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\xa0came up again and again that a lot of people\xa0really were living through enormously challenging situations and traumas\xa0and very willing to normalise it in conversation\xa0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\xa0experiencing states that were\xa0"abnormal" or could be classed as\xa0"mentally ill")\xa0felt like a helpful thing -\xa0the urge to have one\'s experience understood unites everyone. I was thinking about networks that could help this (and thinking around\xa0digital networks - Airbnb / dating apps etc. and looked at\xa0some mental health apps\xa0)\xa0I was mostly thinking about place and the fact that it\xa0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\xa0needed stepping up to. \xa0I don\'t know of many\xa0political\xa0utopias that really take into account neurodiversity and conditions like\xa0dementia.
\n\nThis\xa0perspective is drawn from my experience of talking to a multitude of strangers\xa0these last few months and I realise there are many many issues when it comes to mental health. But I\'ll share my naive view as\xa0I\'ve been considering the role that I\'d\xa0taken\xa0up in\xa0wandering about listening\xa0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\xa0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\xa0There is something in spoken expression, being listened to and accepted that is\xa0just vital for emotional processing. With a few technologists I\xa0prototyped some systems that used voice recordings to play back these "real" expressions to others.\xa0Again the emphasis was not on mental illness but on the similarities and the differences in the\xa0longings of the inhabitants of particular locations - the project was inspired by thinking about\xa0how it might be possible to\xa0make networks in Nepal that in some way help\xa0the expression and social processing of the shock around the earthquake.\xa0However,\xa0there had been a depth in\xa0the experience of the interchanges that had happened\xa0whilst\xa0making the recordings that were\xa0more interesting than the voice playback system. The interviews\xa0always came out of a "live" sharing of experience (ie. the interviewee\'s expeirences and my own) and involved risk,\xa0personal disclosure,\xa0agency and shared discovery in a way that listening to a recording does not.\xa0I am still wondering about\xa0digital systems that allow\xa0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\xa0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\xa0Witnessed formal\xa0statements - like rituals - can create marker points in people\'s lives.\xa0Alchoholic\'s anonymous is probably a relevant example.\xa0I wondered about the Samaritans model which sets up this sense that you can make a telephone\xa0call if you are desperate and the "Samaritan" is steady,\xa0sane and absolutely OK. I wonder about\xa0a network\xa0that simply says: whatever you are going through is part of the human experience ie. there is no\xa0broken experience, but there certainly is incredibly challenging experience. \xa0
\n\nIt feels like a\xa0given that two people who are\xa0in grief may find solace in sharing their\xa0real experience and connecting.\xa0\xa0And yet, to generalise,\xa0Western communities often put empahsis on usefulness in society and direct\xa0those\xa0exhibiting signs of mental distress to simply "be OK"\xa0/ go on medication / fix themeselves\xa0-\xa0\xa0I totally agree with the point you are bringing out that\xa0"the community" is often woefully\xa0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\xa0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\xa0Perhaps I\'m thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\xa0that everyone\xa0who lives in a distributed\xa0area\xa0is in\xa0someway involved in processing the emotions experienced in\xa0that place. I\'m aware this is a poetic notion but I think\xa0various imaginative\xa0re-framings\xa0of the issue of mental health\xa0is what\'s needed. Maybe this would only work as a\xa0three way conversation with someone trained and with really\xa0clear guidelines around use but my thinking here is that what\'s needed is not this expert / patient relationship but two humans sharing different experiences of living in a similar\xa0place.\xa0
\n\nMy friend Denis Ngala at\xa0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\xa0health and cultural knowledge was telling me about the work that was being done in Kenya\xa0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\xa0he was communicating\xa0was that recovery was not the problem of the victim\xa0of torture\xa0alone, but that it was the\xa0community\'s task. They were working\xa0to educate the community around how to support the individual live beyond\xa0what they had lived through.
\n\nReal-life conversations from real experience in which neither party is an expert\xa0can be life changing.\xa0I work a lot with VR and seeing through another\'s eyes is certainly helpful but what\xa0really leads to\xa0change is\xa0honestly communicating difficult\xa0experience and listening to others and accepting their experience. There\'s some sort of validation in the honesty of that\xa0process that allows for shifts.\xa0There are lots of CBT, brain training, "look at things brighter" apps around but perhaps\xa0there\'s room for bold\xa0digital networks - with some serious legal tick boxes in place\xa0-\xa0that\xa0make possible structured honest relational\xa0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\xa0speaking in one\'s own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\xa0ways that communication can go, but\xa0there\'s a saviness emerging around\xa0structuring and limiting online\xa0encounter and creating a precise\xa0invitation that makes me think it\'s possible. Online experiences\xa0that move\xa0into\xa0relational and creative territory and away\xa0from the sense that\xa0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\xa0like winning in a\xa0game - there\'s something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\xa0being in dire straights and make\xa0it feel like it\'s worth making the epic journey back to life?\xa0Not sure, but you\'re right that there is a real need for help\xa0with\xa0processing emotions and it\'s something that a healthy culture should be able to give. \xa0
', u'post_id': 5658, u'date': u'2016-05-19 03:55:11'}, {u'user_id': 4, u'title': u'Support rather than "fixes"', u'comment_id': 12059, u'content': u'And here it is. This rings very true. No one can "fix" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\xa0
', u'post_id': 5658, u'date': u'2016-05-20 23:04:34'}, {u'user_id': 3, u'title': u'Reddit conversation: "Check in: How are you this week?"', u'comment_id': 9633, u'content': u'For inspiration check the brief here on the right:\xa0https://www.reddit.com/r/depression/comments/4j46cz/weekly_check_in_how_are_you_this_week/\xa0
\n\nI especially liked this:
\n\nOur focus is on\xa0support rather than "fixes". If you are looking for a more solution-oriented community, check out/r/getting_over_it/\xa0or\xa0/r/GetMotivated.\xa0or
\n\nDo not post or respond with:
\n\nThinking about our\xa0OpenCare\xa0brief in the making, or Pauline & Omri\'s\xa0project design: we need to\xa0signal the rules of the\xa0space somehow in order to build trust that the person sharing is in the right space:\xa0if it\'s for\xa0peer support vs if it\'s\xa0a project/solution\xa0space etc.\xa0
', u'post_id': 5658, u'date': u'2016-05-17 12:24:41'}, {u'user_id': 3433, u'title': u'No worries Alex, hope your recovery is speedy. ', u'comment_id': 25598, u'content': u'No worries Alex, hope your recovery is speedy.
', u'post_id': 6061, u'date': u'2016-12-21 12:09:32'}, {u'user_id': 2569, u'title': u'Link should work now', u'comment_id': 25558, u'content': u'http://doodle.com/poll/wyzmpbbryu8nf6hd
', u'post_id': 6061, u'date': u'2016-12-21 10:05:48'}, {u'user_id': 2569, u'title': u'Sorry', u'comment_id': 25407, u'content': u"I got food poisoning on Monday night and have only just crawled out of bed.
\n\nI'll change the dates to include some on Thurs and Friday as well and repost a link that works
", u'post_id': 6061, u'date': u'2016-12-21 09:44:39'}, {u'user_id': 4, u'title': u'Yes', u'comment_id': 25007, u'content': u'Confirmed. Ping @Alex_Levene .
', u'post_id': 6061, u'date': u'2016-12-20 08:54:35'}, {u'user_id': 3433, u'title': u'Hi, I\'m getting a "Not Found 404" when ', u'comment_id': 24041, u'content': u'Hi, I\'m getting a "Not Found 404" when I try to access the doodle poll link.
', u'post_id': 6061, u'date': u'2016-12-19 19:45:32'}, {u'user_id': 2569, u'title': u'Changes to the Skype Doodle Poll', u'comment_id': 20477, u'content': u'Hi @Nadia, @Natalia_Skoczylas, @Iriedawta, @Bernard,\xa0
\n\nI\'ve updated the doodle poll to include a few more options for our Skype call. I suddenly can\'t do the Sunday/Monday\xa0as i\'m away from the internet those\xa0days.
\n\nIt currently looks like tomorrow afternoon/evening is best for some of us, but no date has more than 3 people available.
\n\nCan you quickly fill in any availability for Tues/Wed days?\xa0
\n\nWe\'ll finalise a date tomorrow.
\n\nn.b. @Noemi enjoy your time away from the internet!
\n\nhttp://doodle.com/poll/wyzmpbbryu8nf6hdvrc5rm8w/
', u'post_id': 6061, u'date': u'2016-12-16 17:23:21'}, {u'user_id': 8, u'title': u'I got it for both', u'comment_id': 19126, u'content': u'<3
', u'post_id': 6061, u'date': u'2016-12-14 23:22:43'}, {u'user_id': 8, u'title': u'Hey you :)', u'comment_id': 18624, u'content': u'Glad to be chatting soon. Insane period right now, skype will be nice catch up <3
', u'post_id': 6061, u'date': u'2016-12-14 23:25:55'}, {u'user_id': 3433, u'title': u"Thanks @Noemi, Yes, I'm available on Sunday if ", u'comment_id': 18220, u'content': u'Thanks @Noemi, Yes, I\'m available on Sunday if the coversation is on. No worries if needs to be another time.
', u'post_id': 6061, u'date': u'2016-12-14 18:43:56'}, {u'user_id': 3, u'title': u'Just to add..', u'comment_id': 17103, u'content': u'I can\'t make it, but wanted to connect you with @Bernard in Galway who had signaled in a previous doodle that he is available this Sunday afternoon from 4pm to 6pm cet if I\'m not mistaken.. Alex, Bernard is doing great work with\xa0An Ait Aile.\xa0
', u'post_id': 6061, u'date': u'2016-12-14 10:29:58'}, {u'user_id': 2569, u'title': u'Follow up conversation', u'comment_id': 14117, u'content': u'Fill in the doodle if you would like to join the follow up conversation:
\n\nhttp://doodle.com/poll/wyzmpbbryu8nf6hd
\n\n@Natalia_Skoczylas, @Iriedawta, @Nadia, @Noemi,\xa0
\n\nPlus any others who want to join this time around
', u'post_id': 6061, u'date': u'2016-12-13 14:24:59'}, {u'user_id': 2569, u'title': u'Maybe Friday', u'comment_id': 11994, u'content': u'Will look at the template, look at the write up for the Call out and Set up another Doodle poll to get dates/times for next week/weekend.
', u'post_id': 6061, u'date': u'2016-12-10 17:01:22'}, {u'user_id': 8, u'title': u'Step one: Design the process as a crowdfunding campaign', u'comment_id': 10215, u'content': u'Here\'s a template for designing and planning crowdfunding campaigns.
\n\nWe agreed that ahead of our next call we would each look at the template and do our individual attempts to fill the different part.
\n\nNext call should be no later than end of next week imho...
', u'post_id': 6061, u'date': u'2016-12-10 16:52:58'}, {u'user_id': 3185, u'title': u'Proposta.', u'comment_id': 28249, u'content': u'Ciao a Tutti
\n\nMi chiedevo se le risorse interessanti suggerite da Rune ed il video non possano essere caricati sul web http://inpe.opencare.cc/.
\n\nCredo che questo possa essere richiesto gentilmente a Costantino, Alessandro e a Moushira che hanno seguito gli step intermedi dello sviluppo di InPe\'.
\n\nGrazie
', u'post_id': 6068, u'date': u'2016-12-16 17:33:05'}, {u'user_id': 3069, u'title': u'it is here', u'comment_id': 27214, u'content': u'the video is here
\n\njust wrote a small update about it
First off, congrats!
\n\nSecond, I remember the great video WeMake showed us in Milano about this prototype, with footage from a conversation and testing with Francesco. I missed it here in the post and on your\xa0website, it would look even better because it tells a beautiful story!\xa0
', u'post_id': 6068, u'date': u'2016-12-16 12:36:31'}, {u'user_id': 4, u'title': u'A conversation about tech improvement of hardware', u'comment_id': 23832, u'content': u'This is (finally) a\xa0conversation about tech improvement of hardware. @Amelia \u2013 moving it to the OE queue.
', u'post_id': 6068, u'date': u'2016-12-16 11:28:45'}, {u'user_id': 4, u'title': u'Great resources!', u'comment_id': 21930, u'content': u'Well done @Rune . This is great stuff.
', u'post_id': 6068, u'date': u'2016-12-16 10:32:21'}, {u'user_id': 3331, u'title': u'Where', u'comment_id': 20226, u'content': u'Well there are literature in abundance. I once worked with Ruth\xa0https://www.kcl.ac.uk/prospectus/staff/index/id/779/alpha//header_search/+/from/searchall\xa0
\n\nAnd have some vague memories about why the thoratic region may be better\xa0
\n\nhttp://biomch-l.isbweb.org/archive/index.php/t-7395.html
\n\nAlso the latest siamoc 2016 conference had some interesting posters on algorithms and field data for fall detection apps that could be of inspiration.
\n\nThe project idea looks good and it could develop into a great alternative to actigraph? @Francesco Zava why dont you harvest internal experiences from the magic group?
', u'post_id': 6068, u'date': u'2016-12-16 00:34:23'}, {u'user_id': 3331, u'title': u'A step further', u'comment_id': 17293, u'content': u'\n\nA great idea of preventing harm when falling
', u'post_id': 6068, u'date': u'2016-12-16 00:51:16'}, {u'user_id': 3185, u'title': u"I'm still waiting for this phase :-)", u'comment_id': 14447, u'content': u'Hello Moushira
\n\nIf I remember correctly, we were left with the promise to participate in the next phase of testing that would involve myself and other guests of the Residential Community in which I live.
\n\nDo You think that it is still feasible, despite the difficulties, or both must defer to meet project deadlines?
\n\nLet me know.
\n\nSee U soon :-)
', u'post_id': 6068, u'date': u'2016-12-14 15:06:23'}, {u'user_id': 3069, u'title': u'belt was an option yes', u'comment_id': 10878, u'content': u'yup, designing inpe as a belt accessory kind of device, is something that we investigated.\xa0 Lets see how this goes with testing.\xa0 Although, given our testing scenarios, activities like sitting down, doing to bed, would also bear risk of accuracy with the central body location.\xa0
', u'post_id': 6068, u'date': u'2016-12-14 13:57:18'}, {u'user_id': 4, u'title': u'Near the center of mass? ', u'comment_id': 7159, u'content': u"I can see how calibrating\xa0the accelerometer 's sensitivity would be\xa0a problem. If the purpose is to detect when the wearer falls, would it maybe be better to position it near the centre of mass, rather than on a limb? I am sure you have already thought about it, I am just curious.
", u'post_id': 6068, u'date': u'2016-12-14 12:27:39'}, {u'user_id': 3185, u'title': u'Why Not?', u'comment_id': 32534, u'content': u'Sure Allex
\n\n"Impact Hub" is an international network focused on joint planning and acellerating of sustainable self-employment and social innovation projects. U can make contact through the web address http://www.impacthub.net/ or http://milan.impacthub.net/ (in Italian).
\n\nMy suggestion would consist both in the realization of effective collaboration for the operation of LOTE6, having such organization spaces and an important visibility in Milan, both in the contamination as regards the approaches and good design practices for the realization of local initiatives, which in essence is the Edgeryders focus.
\n\nWith regard to Your question on the candidacy "expert" in accessibility and fruition issues "4all" during LOTE6, I believe that the writer can contribute.
Thank You
', u'post_id': 6014, u'date': u'2016-12-17 10:08:00'}, {u'user_id': 2569, u'title': u'Clarification', u'comment_id': 32412, u'content': u'Hi Francesco,
\n\nI understand and fully agree with your second point (ensuring access to the LOTE site to encourage participation by people with various access requirements)
\n\nThe documentation you have provided is very useful,\xa0thank you. @Nadia, @Natalia_Skoczylas, I think we need to look at this as a specific area of focus. The OpenCare project is likely to attract participants with diverse access needs in greater numbers than previous events. Do we need one person to focus solely on ensuring a quality experience for these participants? If so is there an obvious candidate? My personal experience is that events that really focus on providing support for mixed ability groups create really high quality events because they\'ve \'sweated the details\' in every area.
\n\nWith regards your first point about \'Impact Hub\' i didn\'t understand what you are suggesting. Could you rephrase it?
', u'post_id': 6014, u'date': u'2016-12-17 08:41:45'}, {u'user_id': 3185, u'title': u'Some important details!', u'comment_id': 32376, u'content': u'Guys, do not forget the heart of the initiative is the "Take Care"!
\n\nAs regards the choice of where to hold this event, alongside the necessary evaluation, may I suggest a connection with reality is active both locally and internationally. I thought about it the network \u201cImpact Hub\u201d which, for its planning and operational dynamics purposes, could be an interesting collaboration.
\n\nRelatively logistical and organizational aspects, suggest a greater focus on the physical and sensory accessibility of sites and content that, if neglected, could constitute an unacceptable discriminatory for Edgeryders "disabled" eager to concretize their participation in the event. It seems appropriate, therefore, to devote a minimum percentage of the project energy to the search for adequate space and for the realization of support activities to those who attend the event and only in need of some extra attention.
\n\nIf you were to opt for Milan, these are some tips to help the hospitality, operations and mobility:
\n\nTo close, in addition, it would be a major step in the implementation of care by making \u201calternative versions\u201d of pre | during | post documentation and \u201cmaterial\u201d event.
\n\nThank You
', u'post_id': 6014, u'date': u'2016-12-10 17:34:00'}, {u'user_id': 8, u'title': u'A proposal for the pop up village', u'comment_id': 32194, u'content': u'While in Galway this weekend (writup coming soon), I met Pat (carpenter and permaculture/organic agriculture specialist)\xa0and we hatched an idea which I think is both fun, easier to finance and shortens the distance for us to go from pop-up into leaving behind useful infrastrucutre/ permanent structures.\xa0
\n\nTiny houses.
\n\n
If we were to set up tiny houses and dedicate each one to a specific topic/ kind of solution/or challenge... then it\'s probably going to be a lot easier to fundraise too \xa0
If we stretch the time of the event to a three week festival with following phases:
\n\nPat is up for guiding the work of preparing for and building the tiny houses. I think the tour could be about finding appropriate slots of land/locations and local partners....
\n\nWhat do you say?
', u'post_id': 6014, u'date': u'2016-12-08 11:40:24'}, {u'user_id': 2569, u'title': u'Sow the seed', u'comment_id': 32015, u'content': u'If Milan are keen to be our host for LOTE6 then i would welcome that. There is certainly some sense to that partnership as Edgeryders have already invested time and work in the city, and some of the work of highlighting initiatives will be done. As the city is heavily invested in the OpenCare program, but didn\'t run a workshop during Open&Change there is some sense in it being a strong candidate.
\n\nAs you say @Alberto we wait to hear what the offer is.
\n\nIn the short term i agree that this is a good way of undertaking outreach to other cities. My gut feeling is that we could find LOTE 7/8/9 through committing now. It feels like the OpenCare project and what we have learnt from it will stay with us for a few years, so if we prototype the OpenCare PopUp village this year it may be a theme we return to for the next few years.\xa0
', u'post_id': 6014, u'date': u'2016-12-06 07:44:29'}, {u'user_id': 4, u'title': u'The special status of Milan', u'comment_id': 31959, u'content': u'At last week\'s\xa0consortium meeting in Milan I informed the consortium of what we are doing here.\xa0
\n\nThey strongly support the idea that LOTE6 should take place in Milan. They also appreciate that an open call is a good way to do engagement.
\n\nJust let\'s keep @Rossana_Torri and @Luciascopelliti in the loop. Hopefully the result of this will be that Milan will make us a great offer. Certainly it is a fairly unique city for progressiveness of policies, especially around public spaces, and robustness of the charitable sector (several wealthy foundations focused on the city).\xa0
', u'post_id': 6014, u'date': u'2016-12-05 15:33:28'}, {u'user_id': 2569, u'title': u'Managed to update and keep the formatting', u'comment_id': 31781, u'content': u'Updated version is now available above
', u'post_id': 6014, u'date': u'2016-12-05 15:07:53'}, {u'user_id': 2569, u'title': u'Shall i move it to the wiki above ', u'comment_id': 31755, u'content': u'Shall i move it to the wiki above so it is easy to see the contents?
', u'post_id': 6014, u'date': u'2016-12-05 14:40:12'}, {u'user_id': 137, u'title': u'Yes,it is not that different - i think ', u'comment_id': 31694, u'content': u'Yes,it is not that different - i think we are pretty much happy with the shape of it at the moment? @Noemi, @Nadia @Alberto, \xa0please give it one last look and let us know if there is something missing. maybe the benefits for the city could be longer, but can\'t think of more at the moment.\xa0
', u'post_id': 6014, u'date': u'2016-12-05 14:37:20'}, {u'user_id': 2569, u'title': u'I have a few contacts', u'comment_id': 31433, u'content': u'I could try reaching out them.
\n\n@Natalia_Skoczylas did you see the redraft that i posted above?
', u'post_id': 6014, u'date': u'2016-12-05 14:28:24'}, {u'user_id': 137, u'title': u'I have been there \xa0and i really liked ', u'comment_id': 31349, u'content': u'I have been there \xa0and i really liked it;) do you have contacts there? i will try the same with my university city \xa0and some of the \'rebel cities\' whose politicians i have met at euroalter campus.\xa0
\n\nI have already written back to Lille\xa0but no response. @Aravella_Salonikidou is the call detailed enough for you to try?\xa0
\n\nThis way we have talks going on with Gallway \xa0Lille thessaloniki and we start pitching in Uk and Poland. something will surely work out.\xa0
', u'post_id': 6014, u'date': u'2016-12-05 14:02:31'}, {u'user_id': 2569, u'title': u'Perhaps Birmingham?', u'comment_id': 30876, u'content': u'I read this article that someone wrote about my University city:
\n\nhttps://provocations.darkmatterlabs.org/make-space-for-the-real-birmingham-36fdcb583d5e#.rlk1qd5ob
\n\nI definitely think they are looking at ideas that fit with ER values. Perhaps we could reach out to them. Birmingham is a really interesting, exciting and cosmopolitan young city. I had a great 4 years living there and still go back to visit it regularly.
', u'post_id': 6014, u'date': u'2016-12-05 12:50:56'}, {u'user_id': 2569, u'title': u'Redraft', u'comment_id': 30305, u'content': u'I spent today writing a brand new draft of the call out document.
\n\nIt combines the info written by @Natalia_Skoczylas in this Wiki, @Nadia in the \'Brainstorming LOTE6\' wiki and my suggested structure in the comment here:
\n\nI would welcome any suggestions, or comments. As you can see it\'s quite long, but it is in depth about the what, the why and the how. I feel it is quite comprehensive. I\'ve also split the structure so that the first pages deal with the \'story\' of what we want to do and the last pages deal with the details.
\n\nI\'ve made the link open but comment only for now. If anyone wants edit rights just email me and request them:
\n\nPing: @Alberto, @Noemi, @johncoate @Patrick_Andrews
\n\n', u'post_id': 6014, u'date': u'2016-12-03 14:03:06'}, {u'user_id': 8, u'title': u'Embed on a collaboration page (openandchange)', u'comment_id': 29825, u'content': u'that makes it visible and if we have some comment field below people can interact around it...No?
', u'post_id': 6014, u'date': u'2016-12-17 15:07:26'}, {u'user_id': 3, u'title': u'A shared google calendar ', u'comment_id': 29811, u'content': u'Natalia and Alex both confirmed g calendars OK.
\n\nI have set one up, see here. The problem with public calendars is that while they are visible, not anyone can automatically add to them. So I am adding people manually upon request. Then syncing should not be a problem - but you do need to edit your own calendar events and assign them to the OpenCare PopUp Village Calendar.
\n\nGuys, most of you are added already.
', u'post_id': 6014, u'date': u'2016-12-08 16:04:00'}, {u'user_id': 4, u'title': u'Shared calendar => win', u'comment_id': 29784, u'content': u'Maybe make it open, so that people can add themselves to it?
\n\nBUT: please, do not just go out and make something. I think this needs to be "done right", like @Matthias likes to say. Among other things, this means taking into account what people are already using as calendar apps, to save them (er, us) the hassle of having to manage TWO calendars (one for yourself, one for the shared part).\xa0
', u'post_id': 6014, u'date': u'2016-12-01 17:19:02'}, {u'user_id': 3, u'title': u'Thanks dear!', u'comment_id': 29721, u'content': u"I don't know exactly, sometime February-March, UNDP\xa0stuff more than OpenCare as we are planning a follow up to Future Makers, and so the community dimension is there anyway.. so I thought it might be worth doing something on the side.\xa0Will email you the details in case we don't get to blog about this soon.
", u'post_id': 6014, u'date': u'2016-11-28 21:12:55'}, {u'user_id': 2201, u'title': u'What tours? ', u'comment_id': 29528, u'content': u'Sorry guys, I\'m just trying to catch up.\xa0
\n\n@Noemi when are you coming to Armenia? Looking forward to catch up! Have a place to stay? xx
\n\nIf you want to consider ICA\'s space in Yerevan, count us in as a potential space for LOTE6.
', u'post_id': 6014, u'date': u'2016-11-28 21:04:00'}, {u'user_id': 3402, u'title': u'Yes, please! ', u'comment_id': 29011, u'content': u'Yes, please!
Check inboxes in mail and Fb <3
', u'post_id': 6014, u'date': u'2016-11-29 09:27:24'}, {u'user_id': 8, u'title': u' Got in touch with Ayate who is from Lille about the visit', u'comment_id': 28722, u'content': u"just sent her a message asking if it's ok I connect you two to discuss. From Brussels lille is a short trainride\xa0away, so I could do it.... Also, Ronan'll probably want to be onboard also. Will ask him to create account so he can get in this conversation, planning etc.
", u'post_id': 6014, u'date': u'2016-11-28 21:33:33'}, {u'user_id': 137, u'title': u'@Aravella Salonikidou , let', u'comment_id': 28442, u'content': u'@Aravella_Salonikidou , let me know if you need a presentation or a document to show to the city\xa0
\n\n@nadia, is there anything we could do with lille? Or we juts have to wait now;)
', u'post_id': 6014, u'date': u'2016-11-28 15:15:19'}, {u'user_id': 8, u'title': u'I do now :))', u'comment_id': 27589, u'content': u'Someone working on Alt33c3 is from and based on Sofia. Tell me what you need.
', u'post_id': 6014, u'date': u'2016-12-17 15:06:12'}, {u'user_id': 3, u'title': u'Got it!', u'comment_id': 27507, u'content': u"We'll see, many things are just now being planned. Maybe we can accommodate your (i must say) pretty awesome schedule Alex! <3
", u'post_id': 6014, u'date': u'2016-11-28 22:36:02'}, {u'user_id': 2569, u'title': u'Also heads up', u'comment_id': 27445, u'content': u'I\'m going to Thessaloniki mid January. Vault festial events are in early February.
\n\nIn May i\'m going to Armenia for the month to spend time at Yerevan ICA with @Iriedawta and her team (and do some arts work)
\n\nIn June i go to Finland for the whole month for a Back to Basics arts residency (so will be out of contact for the whole month)
\n\nI\'m also looking at a possible trip to Abkhazia for March/April time, depending on other things in my diary.
\n\nI\'d love to join the scouting party, but February is the worst time for me. I\'ll be working in London for the festival. Don\'t let my absence changing the planning though.
', u'post_id': 6014, u'date': u'2016-11-28 18:20:32'}, {u'user_id': 3, u'title': u'The tours can happen at the same time.', u'comment_id': 27311, u'content': u'I think February is great..!
\n\nI propose we have a skype call ahead mid December in order to pull together all the potential sites for February (as you said, we need to plan 2 months in advance)\xa0and groups around them in a dataset similar to the Case Study Adventure\xa0in 2014. Some of us\xa0have places we think are potentially interesting.
\n\nAlso, we have overlapping travel stuff already between those who have so far manifested interest to join the scouting: to give you an idea, in Jan/\xa0February with Alex Levene we want to\xa0go to\xa0Thessaloniki, then to the\xa0Vault Fest London event\xa0+ I might do a Georgia/ Armenia short tour on a difft account. An ER members shared\xa0calendar would come in handy.
\n\nDo you know someone in Bulgaria Natalia?
', u'post_id': 6014, u'date': u'2016-11-28 17:25:00'}, {u'user_id': 137, u'title': u'Good evening everyone, sorry for the radio silence, ', u'comment_id': 26925, u'content': u'Good evening everyone, sorry for the radio silence, but the forum just finished and i try to catch up with tasks.
\n\nI was drafting a bit of questions and ideas on how to proceed, as I will be now preparing the tour (and hopefully parachuting again somewhere to put together the village). Sorry for mistakes, I use a tablet, not comfy.
\n\nNoemi has already mentioned two routes for the tour, one around Spain and Portugal to Morrocco, and one from Romania to Greece (we could add Bulgaria here, we lack Bulgarians ). Considering the weather, I would go for the first tour in February, and second April. We would need a least two months before heading off to establish links and plan ahead.
How long can the tours be? How many people do we intend to bring with us in the circus? Destinations are cheap, that helps.\xa0
\n\nI would already shape each of these tours as a small community capacity showcase, bringing along one or two members who participated in the open and change and could best illustrate what care is about, but also add a tangible component to the tour.\xa0
\n\nWe need to think how, besides bringing stories and enriching the research, can we use this experience in building the reef.
\n\nWe can already experiment with some of the ideas that pop up village has been testing, such as pop up shop where consumers buy things for others (medicine for the sick, socks for the homeless), barbers for the sexual minorities, mobile showers and so on.\xa0
\n\nI will be outting together a list of cities and partners, but also ideas for activities - any information that could help here, contacts, tips, great actions that we could use are more than welcome.
', u'post_id': 6014, u'date': u'2016-11-28 15:13:00'}, {u'user_id': 2569, u'title': u'Nice idea.\n\nShares the load amongst protagonists in the ', u'comment_id': 25118, u'content': u"Nice idea.
\n\nShares the load amongst protagonists in the city and provides ER with more support and possibilities.
\n\nI've made a quick edit to suggest this.
", u'post_id': 6014, u'date': u'2016-11-23 04:44:05'}, {u'user_id': 4, u'title': u'Open call => win', u'comment_id': 24254, u'content': u'I really like the idea. We can give LOTE6 to the community to place it where it is most wanted, and find new allies and friends in the city in the process. Well played, @Natalia_Skoczylas and all.
\n\nIf I can make a small suggestion, I would transform the "two local volunteers" into co-protagonists\xa0of the proposal. In other terms, the proposal would be made jointly by a city and two community members. What do you think?\xa0
', u'post_id': 6014, u'date': u'2016-11-22 20:14:22'}, {u'user_id': 3402, u'title': u'Good Idea!', u'comment_id': 20962, u'content': u'I think Thessaloniki is a good idea. I\'ll ask the mayor \xa0asap! Maybe, I\'ll need more details.
@Aravella_Salonikidou for the city of Thessaloniki? Do you think there would be interest for such an event - a pop-up village, like a demo of OpenCare initiatives\xa0for which Edgeryders would join efforts in fundraising?
', u'post_id': 6014, u'date': u'2016-11-22 17:20:53'}, {u'user_id': 8, u'title': u'Thanks!', u'comment_id': 12544, u'content': u'The images used need a lot more work, they\'re mostly placeholders.
\n\nAlso I think we could do with an animation of what we want to build based on coral reef similar in style to the fabulous ones @SamMuirhead made.\xa0
', u'post_id': 6014, u'date': u'2016-11-22 18:46:09'}, {u'user_id': 2569, u'title': u'I really like this analogy of the reef. ', u'comment_id': 11607, u'content': u"I really like this analogy of the reef. It's smart and it makes sense.
\n\nWhen i'm back in the UK i'm going to talk to the local mayor and see if there is a potential space in my home town.
", u'post_id': 6014, u'date': u'2016-11-22 15:25:15'}, {u'user_id': 8, u'title': u'Perhaps Lille', u'comment_id': 9139, u'content': u'Just did a presentation of what we want to do over the next period at Adaweek. It was well recieved. and someone proposed that we do it in her hometown, lille.\xa0And wants to get involved. Let\'s see
p { margin-bottom: 0.25cm; line-height: 120%; }a:link
\n\n\n\nCiao a Tutti
\n\nAccolgo entusiasticamente l\'iniziativa di dedicare uno spazio importante al Progetto OpenCare sulla Piattaforma Digitale Edgeryders!
Tuttavia mi permetto di fare osservare alcuni aspetti di \u201ccriticit\xe0\u201d di natura strategica e comunicativa:
\n\nEccesso di ansia e di scrupolo? :-/
\n\nUn passato di dtp autodidattico e di \u201csviluppatore\u201d web difficile da dimenticare!
Grazie
\n\nPS:
\n\nCome si apre una nuova discussione sulla Piattaforma, in generale, e sullo spazio Op3n Care, nel dettaglio?
', u'post_id': 6069, u'date': u'2016-12-16 20:29:39'}, {u'user_id': 4, u'title': u'My reply to Francesco', u'comment_id': 29901, u'content': u'@Francesco_Maria_ZAVA : from what I know, most ethnographers would agree with you. "Normal" ethno research works with audio recordings, that are then transcribed. And transcription is a very big deal in ethnography. Researchers are armed with resources like\xa0this: write (H)\xa0when the informant \xa0utters an "audible inhalation", (Hx)\xa0when she utters an "audible exhalation". Write\xa0@ for laughter ("one per pulse", so @ @ @) etc. etc.
\n\nTrouble with that, there is a tradeoff between transcription accuracy and costs of data, so, ultimately, between transcription accuracy and number of informants that ethnographers can afford to have in a study. Already 10 years ago, in a relatively low-cost (Western) country like Italy, transcriptions cost 100 EUR per hour of recording. My colleagues at UNIMORE tried the time-honored academic move to deploy unpaid students as transcribers, but it did not work. The transcriptions were of too low quality. So, ethnography was always a small-numbers research techniques: 20 informants is a respectable number in a study. In opencare, with 50% of the project done, we have already 202.\xa0
\n\nEthnography in its traditional form will continue to exist. But opencare is trying to repurpose it\xa0to serve it as a tool for collective intelligence. And collective intelligence needs... collective, i.e. fairly large numbers.
\n\nThe professional quality audio recordings of Taking Care, I think, go to prove my point. We have them. But no one, it seems, has the time and \xa0interest to listen to them and transcribe them... so they stay unavailable. You could put them on SoundCloud without transcription, but I doubt many people would play them and engage with their content. Whereas I got in touch with Luca from Dynamoscopio, armed with my written notes, and we agreed to do a post on Mercato Lorenteggio in English together. We will publish, probably,\xa0it next week.\xa0
\n\nIn fairness, though, there are\xa0people who like audio.\xa0@trythis is one of them.\xa0
', u'post_id': 6069, u'date': u'2016-12-15 21:25:27'}, {u'user_id': 4, u'title': u"Francesco's main points", u'comment_id': 29666, u'content': u'Non preoccuparti, @Francesco_Maria_ZAVA . Scrivi come ti senti comodo, in qualche modo ci capiamo. Ezio, Noemi, immagino Moushira\xa0e anche Guy (@melancon ) capiscono l\'italiano qui. Io poi ti rispondo eventualmente in inglese, mi pare che tu mi capisca.
\n\nGuys, Francesco basically agrees with Guy and disagrees with me. Transcription would work for him. Main reason: he likes the authenticity of emotional expression (pre-editorialization).\xa0
\n\nHe points out that at Taking Care\xa0we had audio recorders, so the documentation is there (in audio form).
\n\n\xa0Finally, he thinks that this is indeed a conversation on care. He has quite an original formulation for this. His exact words (rendered to the best of my abilities) are:
\n\n"This is a conversation that cares for people as they, in their turn, take care of others through each one\'s specific sensitivities and abilities."
', u'post_id': 6069, u'date': u'2016-12-15 20:59:19'}, {u'user_id': 3185, u'title': u'Alcuni Spunti.', u'comment_id': 29384, u'content': u'p { margin-bottom: 0.25cm; line-height: 120%;
\n\n\n\nAlberto
\n\nConcordo con Melancon sull\'idea di utilizzare delle tecnologie semplici (economiche) per consentire l\'unione tra il mondo sincronizzato (offline) e quello asincrono (online) durante gli eventi ed i dibattiti che costituiscono la realizzazione delle idee e dei progetti che nascono sulla Piattaforma Edgeryders, che si sviluppano attraverso il Progetto OpenCare attraverso il supporto dei suoi partners o che possano vedere la luce nel pi\xf9 ampio alveo del \u201cPrendersi Cura\u201d. Ritengo infatti che l\'adozione di un sistema di trascrizione \u2013 indubbiamente ricercando soluzioni aperte laddove quelle commerciali possano costituire un ostacolo \u2013 possa contribuire alla \u201ccattura\u201d sia dei contenuti sia delle emozioni (gli \u201cuhm\u201d, i \u201cbah\u201d o gli \u201cehm\u201d!) che non dovrebbero essere dispersi in funzione \u2013 se pur importante \u2013 dei dati etnografici e delle elaborazioni prettamente statistiche. A questo proposito faccio inoltre umilmente notare che durante le sessioni di co-design e nei lavori di gruppo del Workshop tenutosi a Milano sui tavoli c\'erano audioregistratori professionali, utilizzati previo consenso e liberatoria firmata a suo tempo da tutti i partecipanti, la cui finalit\xe0 immagino sia la documentazione di tutti i processi del Progetto e che potrebbe divenire base per una riflessione ulteriore.
\n\nCredo pertanto sia opportuno non distrarre il focus di tutto questo lavoro che \xe8 \u2013 dovrebbe restare \u2013 la persona con tutte le sue \u201ccolorazioni\u201d.
\n\nConcordo inoltre sull\'importanza della \u201ccostruzione\u201d della storia, materiale non elaborabile prerogativamente dai soli giornalisti o dagli esperti analisti, che in realt\xe0 contribuirebbe in modo sostanziale alla \u201cfuoriuscita\u201d della cultura aperta, libera e condivisibile della progettualit\xe0 e del prendersi cura degli altri dal \u2013 forse sin troppo esclusivo? - mondo digitale nella quale rischia di rimanere relegata, laddove non gi\xe0 monopolizzata dai circuiti elaborativi caratterizzati da un pressoch\xe9 assente coinvolgimento e partecipazione diretta delle persone \u201cportatrici\u201d legittime di istanze e di aspettative.
\n\nChiudo queste mie osservazioni aggregandomi alla richiesta di Moushira circa la realizzazione di un modello di interfaccia per la collaborazione online-offline.
\n\nIl quesito \xe8 se tale \u201coggetto\u201d, oltre che un software oppure una applicazione orientata ai dati ed alle correlazioni, possa essere costruito come una struttura in grado di produrre contenuti \u201ccommunity generated\u201d polimediale che possa garantire funzionalit\xe0 \u201ceditoriali\u201d e comunicative multicanale.
\n\nRispondendo al Tuo quesito: S\xec, questa \xe8 una conversazione che si prende cura delle persone che, a loro volta, si prendono cura degli altri attraverso la specifica sensibilit\xe0 e le particolari attitudini!
Grazie
\n\nPS:
\n\nMi scuso per l\'esclusivo utilizzo della lingua italiana che, d\'altra parte, mi consente di dare apporti (spero) maggiormente pertinenti ed approfonditi.
', u'post_id': 6069, u'date': u'2016-12-15 18:25:38'}, {u'user_id': 4, u'title': u'Added to the OE queue', u'comment_id': 28793, u'content': u'Way to go, @Amelia
if nothing else, to capture the conversations about methodology. I also have codes for "definitions of care" so aggregating those will be useful as well. I will use a limited number of tags for these kinds of conversations so it shouldn\'t create too much noise/distraction from the more overtly community-driven conversations.
', u'post_id': 6069, u'date': u'2016-12-15 20:02:32'}, {u'user_id': 4, u'title': u'Is this a care conversation?', u'comment_id': 28250, u'content': u'Calling @Amelia
\n\nThis conversation we have here is very interesting, but\xa0what\xa0is it? People involved are the research teams but also two fellows (and I expect that @Federico_Monaco will soon jump in). We are talking about research, but we are also talking about the architecture of community-provided care services... is this stuff that you would want to code?
', u'post_id': 6069, u'date': u'2016-12-15 12:35:06'}, {u'user_id': 4, u'title': u'Crowdsourcing the costs of editorialising', u'comment_id': 27215, u'content': u'@melancon , thanks for this \u2013 a hell of a contribution!\xa0
\n\nI agree with your analysis (asynchronous and distributed vs. synchronous and centralized). I disagree with your solution, though, even if it were technically realistic.\xa0Dictation software would just take a "snapshot" of what people say as they say it. This would make for unreadable material: lots of "ehms" and "ahs", sentences that do not close, missing body language (like nodding when others speak).\xa0
\n\nThe act of writing contains editorialisation. It is a real transcoding from one medium (speech) to another (writing), not just a copy-paste. Ethnographers know this well: they are used to working with recordings.\xa0By insisting on natively online conversation, we crowsdource the editorialisation, and that saves\xa0a lot\xa0of researcher time. Additionally, it empowers the participant, who takes control of the medium in which her content will be consumed by others. Chances of being misunderstood or misrepresented go way down. For example, if I say something with a light-hearted mood to a journalist in an interview, I trust that person with putting my light-hearted remark in the right context, and not making it sound like a serious one. But if I am blogging, \xa0I can take care of that myself. I can also censor myself. And, believe me, I do.\xa0
\n\nSo, no microphones in the room. Let\'s not make a reality show of a result-oriented conversation!
And I mean a distance, because my background places me rather far from both care and ethnography.
\n\nOn a personal and cultural level, I easily link with Alberto\'s comment on the fact that offline (shall we say "on-site") engagement may be difficult for some people. Bringing your thought into\xa0public space is challenging. Personal differences (personality, language, culture) get amplified.\xa0Online forums are asynchronous, this is what gives you time and space to form your ideas and bring them into words. And it\'s true you don\'t have to "fight" to get to the end of your sentence (Take it from a Canadian, living in Europe for quite a number of years, I had to learn how to "fight" and I am still quite bad at it ...).\xa0Also, engaging in synchronous space is difficult partly because participants have different background on the questions being discussed, some being specialists, other having "real" experience dealing with the issues being discussed ... etc.
I suppose the best of the two worlds is to be able to mix synchronous and asynchronous interaction.
\n\n--
\n\nMore importantly, I wish to make a comment\xa0on another aspect of the question Alberto is putting on the table.
\n\nMy understanding is that there is added value in studying the engagement process\xa0(here the exchange of ideas\xa0between participants). Studying the process: being able to see ideas or knowledge collectively form. Now\xa0the process we study is, not only asynchronous and/or synchronous, it is distributed: occuring at different times and locations,\xa0involving different people\xa0in numerous parallel conversations.
\n\nThis is where we may hope to use a bit of technology to help us recover the dynamics and look at things. The direction we follow is to collect exchanges between people and use this as a fairly reliable\xa0trace of how the process developed. Having a longer piece of content summarizing the exchanges is not the same, as you cannot "replay" the exchanges -- although it certainly is valuable (don\'t get me wrong, I am\xa0not saying storytelling has no value).
\n\nSo in a sense,\xa0the problem is not having things online or on-site. Any trace allowing to replay the dynamics can be used to look at the collective process.
\n\nIf we\'d have a (cheap, please) technology that would recognize people\'s voice signature,\xa0and reliably turn audio signal into text, we\'d be fine and the opencare consortium would have saved itself time and energy\xa0struggling between online or on-site. We\'d turn on this technology during on-site activities and feed whatever container (to make the exchanges available to others to hear live or listen to later (we\'d even be able to make it avialble to the visually disabled!).\xa0People would be able to comment and keep discussing afterwards with people who were not necessarily on-site.
\n\nWe\'d still need to offer both on-site (synchronous) and online (asynchronous) forms of exchanges though to increase the openess of the conversation.
\n\n--
\n\nThis is what we must aim for: a combined synchronous-asynchronous mode of exchanges deployed both on-site and online, with whatever is needed to keep the best posible traces of the process. Then go recursive:\xa0feed the process with whatever knowledge we can gain on the process itself, as it develops.
\n\n--
\n\nHey, I got to the end of this post and you read me through without interrupting!
Interesting insights, @Alberto.\xa0 I have a few questions:
\n\nHow do we define "good"?\xa0 By the number readers? Number of comments? Actual resolution of the discussed problem? All? Defining what "good" engagement looks like, can determine the importance of the space. IMHO a solely quantitative metric could have misleading indications.
\n\nThanks!
', u'post_id': 6069, u'date': u'2016-12-14 15:05:08'}, {u'user_id': 4, u'title': u'Positive vs. normative research questions', u'comment_id': 21824, u'content': u'@Ezio_Manzini thanks for this. It does seem that the existence of two approaches is now established. We knew this from before\xa0"Taking care", but I at least found it useful (if difficult) to go through the full experience of offline.
\n\nThat said, I would like to suggest a different approach from the one you propose. You questions are obviously relevant, but I think we are not in a position to address them yet: we lack the necessary evidence. We have anecdotes ("people find writing\xa0difficult", "hackers are good collaborators", "good collaboration minimizes verbosity"), but no real research on the matter. So, I propose to move from normative to positive research questions. You ask "how can we obtain something which is desirable, for example open care services?" I would like to ask "how do desirable results actually obtain?".\xa0
\n\nThere is little doubt that better, cheaper, faster coordination is conducive to better outcomes in all collaborative efforts, including open care (following your notation: open care is the care that happens out there and is open). von Hippel, for example, makes a strong case that what he calls "free innovators"\xa0systematically\xa0underinvest in diffusion efforts (documentation). He is supported by empirical research in six countries. So, I would start by building a micro model of how collaboration (building and making accessible documentation)\xa0actually happens.\xa0I would keep very close track of online-offline.\xa0
\n\nExample: one of the examples given by von Hippel is NightScout. In the story as he tells it, the collaboration happens entirely online, and is triggered by, of all platoforms, Twitter:
\n\nOn May 14 last year, he [Costik] tweeted a picture of his solution: a way to upload the Dexcom receiver\u2019s data to the Internet using his software, a $4 cable and an Android phone. That tweet caught the eye of other engineers across the country. One was Lane Desborough, an engineer with a background in control systems for oil refineries and chemical plants whose son, 15, has diabetes. Mr. Desborough had designed a home-display system for glucose-monitor data and called it NightScout. But his system couldn\u2019t connect to the Internet, so it was merged with Mr. Costik\u2019s software to create the system used today.
\n\nI am sure that\'s not the whole story. So, here\'s the paper I\'d like you to write, possibly involving some students:
\n\nSo. You (Ezio) could build a small team\xa0and direct them. This would result in a paper called something like "Online and offline environments for\xa0collaboration in free innovation: the case of care services", or similar.\xa0
\n\nFinancially speaking, this thing could be funded by what we used to call the big Fellowships. Now they would entail being appointed by ScImpulse, but that\'s just a bureaucratic detail. @markomanka promised to send me a draft of a possible call for expressions of interest, which we could direct according to what we decide to do here. The stroke of genius would be to embed some participant observation: get a member of the NightScout community to take responsibility for the NightScout case study, etc. This would "embed" OpenCare in those projects.\xa0
\n\nMakes sense?
', u'post_id': 6069, u'date': u'2016-12-15 12:30:00'}, {u'user_id': 3045, u'title': u'Initial thoughts and feedback', u'comment_id': 19944, u'content': u'I will start from Alberto\u2019s post last two lines:\xa0\xa0if considered useful, I would be happy to wrote something on\xa0\u201cBuilding gateways between online and offline engagement\u201d\xa0(I am not sure to understand which activities should I coordinate but, I am sure, some explanations will follow.
\n\nHere few first thoughts/feedbacks on the Alberto\u2019s post (more will follow).
\n\nPremise 1:\xa0if the Milano\xa0consortium meeting taught participants that \u201cbringing the offline debate online is hard\u201d\xa0and that there are at least, \u201ctwo different approaches\u201d, it means that this meeting and workshop have been successful (as a matter of fact, at least of what the workshop was concerned, its goal was exactly to trigger a conversation on this point).\xa0\xa0
\n\nPremise 2:\xa0I understand that the OpenCare research asks for promoting on-line discussions on the issue of open care and, then, measuring, representing them as graphs and discussing these results.\xa0\xa0NB:\xa0writing\xa0OpenCare\xa0I refer to\xa0this specific research\xa0\u2013 writing\xa0open care, I intend the issue of open caring activities in general (as I did in previous posts).
\n\n1.\xa0Alberto is right saying that the two different approaches he indicates emerged in the workshop conversations.\xa0\xa0But, in my view, these two approaches are of quite different nature, and cannot be proposed as polarized answers to the same question.
\n\nIn fact, in general terms, the issue of care can be the subject of a wide range of conversations:
\n\n2.\xa0In this framework, I would rephrase the two approaches emerged in the workshop, and the related questions, in this way:
\n\nApproach (A)
\n\nApproach (B)
\n\nIn my opinion, both (A) and (B) are relevant and should be considered, for the sake of the OpenCare research, the focus has to be on the point 2 (A.2 and B.2).
\n\nNB but\xa0\xa0it must be observed that there would be no need to have (B) if \u2013at a given point - it would not generate (A)
\n\n3.\xa0I think that, for the sake of both open care and OpenCare, we should have a third level o in our questions, that is:
\n\nStorytelling is also what I argued for, to Costantino and Alessandro in Milano: someone that translates what makers dont have the time into an accurate entry about their work. This is in less citizen journalism and engaging documentation that goes beyond note taking. While your\xa0citizen journalism idea is another way of adding a personal voice to the online conversation, the requirement for a structured research like OpenCare is that it needs to capture more viewpoints of more people who are in an offline environment. So a storyteller would bring their own, and incorporating\xa0some\xa0other points. What about the rest of the points which in our data strategy need to be attributed to\xa0distinct\xa0users?
\n\nSo what I recommended was a storyteller that plays the interviewer at the event, in a similar way that Natalia interviewed people on skype in OpenandChange and posted their stories in their name and language.\xa0
\n\nMy assumption is that almost anyone, including a technical person, would be able to articulate even half baked ideas about how they work if asked pertinent questions over a friendly, informal conversation.
\n\n@Alberto I especially like point 2) modeling online-offline. Sign me up for that.
', u'post_id': 6069, u'date': u'2016-12-14 10:23:37'}, {u'user_id': 3293, u'title': u"Back to 'le journalisme flaneur'", u'comment_id': 14343, u'content': u'Hey,\xa0
\n\nI read a peace lately , in french, about bringing back the \'journalisme flaneur\', a person between a tourist (in the broader sence of the word)\xa0and note taker.\xa0
\n\nThe way that person looks at an event is different, he or she is trying to give a sence to what he or she is seeing at the moment while moving between the conversations, it\'s a less objective note taking, but a richer experience for the reader i think.\xa0
\n\nAnd to link it with the offline , i think we need the same kind of person, a storyteller more then a speaker. Somebody that make a story live through his experiences. The term \'conteur\' in french is the best word to describe that.\xa0
', u'post_id': 6069, u'date': u'2016-12-14 09:40:36'}, {u'user_id': 4, u'title': u'Community journalists', u'comment_id': 10953, u'content': u'At LOTE4 and LOTE5 we used the concept of "community journalists", semi-organized note-takers. It worked like this:
\n\nBEN \u2013 I went through a serious burnout period two years ago. Something that seemed to help was temporarily deactivate my Facebook account, because it took away the anxiety from being constantly poked and drawn back to interacting with others. \xa0
\n\nI imagine a documentation team could be guided to produce notes that make more sense from an ethnographer\'s point of view.\xa0
\n\nNotice that this is NOT storytelling, nor journalisme flaneur... though those are valuable too. First person narrative are preserved, at least when the community journalist do their\xa0job well.
', u'post_id': 6069, u'date': u'2016-12-15 11:50:00'}, {u'user_id': 2569, u'title': u'Editorialising content to create stories', u'comment_id': 7056, u'content': u'A lot of what you say in the second half of this post makes sense but is very much outside my field of understanding or activity.
\n\nI was stuck by some of the thoughts in the first half around creating content from discussions and events. Is the perhaps an area where an overlap with the citizen journalism scene may yield results. People are invited to participate in the event as a \'journalist\' (distinct from a note taker), the objective is the try to capture the essence of the event, the connections between people and ideas etc (I\'m thinking of the posts from @Yannick \xa0at Re:Publica -\xa0https://edgeryders.eu/en/blog/republica-what-i-learned-about-cities-as-open-systems-political)
\n\nThere is still an important space for note takers and people who try to capture the detail of what hapens and is said, but this is attached to a narrative or story that engages the audience.
\n\nWith regards finding ways of bringing intros into offline conversations, i\'m not sure if there is a comfortable and efficient way of creating a solution withour being overly prescriptive about how an event or discussion is structured. One could pre-organise a series of questions that you want to answer and post them in a digital space so that whilst the discussion happens people can aso engage online to think of answers. But i worry that you start to dictate the flow of conversation too much in the offline world. It\'s a very difficult path to tread.
', u'post_id': 6069, u'date': u'2016-12-14 07:57:54'}, {u'user_id': 3503, u'title': u'Undisclosed content ', u'comment_id': 18909, u'content': u'Undisclosed content', u'post_id': 558, u'date': u'2016-12-16 16:35:28'}, {u'user_id': 4, u'title': u'Steal away :-)', u'comment_id': 18826, u'content': u'I am glad you liked it, @Eoghan ! Steal away: when I say "open" I know what I am talking about, and I am aware of the consequences.
The desire for change... yes, in many cases it is there. But it can take adversarial, nasty forms. Right now, @Nadia is involved in organizing #alt33c3. Generous people chipped in, put in money and time, etc. They clearly meant well. But the process involved a lot of bickering about what, to me, looks like details: "you are using Slack! It\'s no an open source tool! You must be corporatocrats!" In this case, this was deflected (and naysayers coopted) by the usual do-ocracy judo: "Ah, you\'re right. How about you set the whole group up with a tool that everyone, including you, can live with? We are happy to shift, if you put in the work yourself!". But this is a group of advanced doers, hacker ethics and hacker skills. It does not always work. \xa0
\n\nI will write you a private message re: the avatar.\xa0
', u'post_id': 558, u'date': u'2016-12-16 10:15:50'}, {u'user_id': 3503, u'title': u'Undisclosed content ', u'comment_id': 18649, u'content': u'Undisclosed content', u'post_id': 558, u'date': u'2016-12-16 07:57:05'}, {u'user_id': 4, u'title': u'"Naturally"...', u'comment_id': 18271, u'content': u'Hei, @Eoghan , no problem at all.
What do I think? I am unsure about "naturally" in "society will begin to balance itself naturally". It is critical that at least a few people step up and take it upon themselves to educate themselves and others at fruitful interaction. This needs to be done very early in the game. @johncoate likes to say that once a culture has set in a community, it\' almost impossible to dislodge it. And it is hard work, very.\xa0
\n\nBut I think it\'s the work that really matters, that really makes the difference. I have even been doing some work about designing "rules" for healthy, constructive human-to-human interaction. I call it Protocol, and it emerged in the context of the unMonastery prototype. If you are interested, here it is:\xa0https://edgeryders.eu/en/unmonastery/protocol-01-engineering-human-to-human-interaction-for
\n\nTwo questions: how do I pronunce your name? And: can I ask you to re-load your avatar? Pictures instead of the default faceless man make our (now yours, too) site more attractive and personal. \xa0
Hello @Eoghan , welcome from me too!\xa0
\n\nI am quite passionate about the idea of electronic democracy (well, actually I know more about electronically facilitated\xa0government,\xa0or even governance). I personally ran some government projects that used social software, and even wrote a book about this stuff. In fact, Edgeryders itself was born as one of those projects!\xa0
\n\nThe main takeaway from my experience of several years is this: it\'s not about the tech.\xa0The tech is important, of course, but it\'s the culture that the community builds around using the tech that drives the process. One of the most remarkable guys who hangs out Edgeryders, @johncoate , used to work for The WELL, the world\'s very first online community that was intentionally designed as such. He sent me a screenshot of the opening screen:
\n\n
Convenience? Not by our standards. And yet, it flourished. What\'s more, the different forums ("conferences") had the exact same interface,\xa0but very different cultures. The parenting conference\xa0was caring and nurturing; the political conferences tended to be virtual places of aggression and shouting at each other. This story is narrated by @Howard_Rheingold in a fantastic book called The Virtual Community.\xa0
\n\nSo, I think you are wise not to bank on the direct democracy software to sort everything out. In fact, I fear there is something in deliberation that erodes community... but this might just be me being too cautious. What are your experiences?
', u'post_id': 558, u'date': u'2016-12-13 19:11:00'}, {u'user_id': 3503, u'title': u'Undisclosed content ', u'comment_id': 10763, u'content': u'Undisclosed content', u'post_id': 558, u'date': u'2016-12-13 17:28:18'}, {u'user_id': 3, u'title': u'Hi @Eoghan, nice to meet you! We missed ', u'comment_id': 6848, u'content': u'Hi @Eoghan, nice to meet you! We missed each other while I was in Galway this last spring.. and I havent had the chance to hear about "Grassroots Ireland". I understand you are based in Galway?
\n\nIs the liquid democracy application up somewhere, or have you tested it? I think you\'re spot on to assume people will only use new democratic tools if they are convenient. I believe this to be true even for those already educated in civic participation, and more broadly this also\xa0stands for engagement with most technologies - especially given the broad offer.\xa0
', u'post_id': 558, u'date': u'2016-12-13 16:46:20'}, {u'user_id': 4, u'title': u"It's on github", u'comment_id': 29720, u'content': u'\n\n\n', u'post_id': 6000, u'date': u'2016-12-16 16:05:37'}, {u'user_id': 2470, u'title': u'Survey data', u'comment_id': 29527, u'content': u'Hi.
\n\nData will be stored on SSE servers.
\n\nI have sent information on data and the survey to Luce as I could not find anywhere to put it in the reporting documents. I guess all the individual data management answers will be compiled to one for the entire project.\xa0
', u'post_id': 6000, u'date': u'2016-12-16 15:59:18'}, {u'user_id': 4, u'title': u'About survey data', u'comment_id': 28441, u'content': u'@Tino_Sanandaji I have read your presentation with interest (and uploaded it to the Consortium meeting documentation folder). Indeed, it seems you find open care more promising for policy than I initially expected. Good.\xa0I look forward to the paper or post. Question: what do you think about inserting a slide on the data? N = ? How are respondents distributed?\xa0
\n\nNote this links to reporting: where are your survey data stored? You will need to answer this question in the context of opencare\'s data management plan. It also links to milestone M10, "Policy research feeding into the conversation", that we had planned for October 2016. In order for this to happen, we\'ll need a synthesis of the research in blog form post; you can publish it on ER, then we will try to engage the community on it. I know you already wrote a post, so it should be simple to republish it on ER.
\n\nAlso ping @Lakomaa FYI.
', u'post_id': 6000, u'date': u'2016-12-16 14:57:21'}, {u'user_id': 3165, u'title': u'Wiki', u'comment_id': 26923, u'content': u'Hi guys,
\n\n\n\nNice seeing you again, and I again regret mismanaging my schedule and only being able to stay in Milan for one day. I have added the short powerpoint
\n\nI was supposed to present on the Wiki anyway. Next week EHFF will also upload our second working paper on open care cases and policy lessons.\xa0
\n\nBest, Tino
', u'post_id': 6000, u'date': u'2016-11-29 21:22:36'}, {u'user_id': 4, u'title': u'Cool!', u'comment_id': 25130, u'content': u'Great, @Franca . Do you want to make an edit to the wiki? Just click on the "edit" tab.
', u'post_id': 6000, u'date': u'2016-11-23 11:39:34'}, {u'user_id': 3324, u'title': u'Comune di Milano Activities', u'comment_id': 24326, u'content': u'Hi @Alberto, We also want to add a presentation about our activities, that are about different WP (1,2,3) and we would like to focus on policy making stuff that we\u2019re implementing. We\u2019re preparing a short presentation (10 min. is fine!)
\n\nThanks
\n\nFranca
', u'post_id': 6000, u'date': u'2016-11-23 10:39:42'}, {u'user_id': 2464, u'title': u'WP6 - a wrap up of the individual meetings', u'comment_id': 20418, u'content': u'@LuceChiodelliUB The WP6 prez need not be long, just a wrap up of things you collected during the Monday interviews. Last chance to remind us of priorities.
', u'post_id': 6000, u'date': u'2016-11-15 10:01:02'}, {u'user_id': 3323, u'title': u'On it ', u'comment_id': 14991, u'content': u'Will do!\xa0
', u'post_id': 6000, u'date': u'2016-11-14 19:22:20'}, {u'user_id': 4, u'title': u'Ethno coding prez', u'comment_id': 7691, u'content': u'@Amelia you will not be physically present in Milano on the 30th, so I will present this part. Can you prepare a few slides with the relevant data?\xa0
', u'post_id': 6000, u'date': u'2016-11-14 11:14:11'}, {u'user_id': 2551, u'title': u'Roger that', u'comment_id': 28830, u'content': u'Enjoy your offline time!
', u'post_id': 523, u'date': u'2016-12-07 10:34:32'}, {u'user_id': 3362, u'title': u'Next year', u'comment_id': 28731, u'content': u"I'll be offline until the end of December, looking forward to have\xa0a call after that.
", u'post_id': 523, u'date': u'2016-12-07 08:49:25'}, {u'user_id': 4, u'title': u'Can we join?', u'comment_id': 28461, u'content': u'@dfko , @WinniePoncelet , I would be interested in being in the call too. I have nothing to contribute, I am just curious. Maybe @Amelia too?
', u'post_id': 523, u'date': u'2016-12-02 00:23:28'}, {u'user_id': 3362, u'title': u'Testing a new way of funding biotech research ', u'comment_id': 27807, u'content': u'Testing a new way of funding biotech research is, for me, already a giant undertaking worth doing. Lots of perverse\xa0effects in biotech\xa0are a direct result of how research is structured, especially financially. Huge R&D capital requirements and high risks involved all along the process from idea to lab scale to factory scale to market. The\xa0time to market can easily be over 10 years, which adds to the complexity. (Sorry for the extremely short summary, a long analysis could fill a few books).
\n\nThis is, in my eyes, the most feasible and direct impact you can have with a project like Open Insulin. More background reading and stories\xa0from the news today:\xa0http://www.sciencealert.com/students-have-made-martin-shkreli-s-750-drug-in-their-chem-lab-for-just-2. The Shkreli story has been all over the web for a while now and shows exactly the perversities that are going on. And the real problem is summed up in a quote I read from Shkreli himself, which basically said what he did was common practise. And he\'s right.
\n\nThe obvious societal and ethical implications of having eg. insulin more accessible makes it worth pursuing as well... The insulin is a long way off being useful as a medicine and I\'ve read most of the team is aware of this.\xa0The potential of open medicine is there in the long term however.\xa0It will need some serious conversation on ethical, medical, legal and other consequences. Luckily, the biohacker community has strong ethics and is open to have the conversation they are starting. It\'s one worth having in my eyes.
\n\nAnyway, how about that Skype call @dfko ? I\'ve messaged the OI account on Twitter, but no reply.
', u'post_id': 523, u'date': u'2016-12-01 19:32:29'}, {u'user_id': 3370, u'title': u"That's not quite the plan we've got planned ", u'comment_id': 26033, u'content': u'That\'s not quite the plan we\'ve got planned for the project.\xa0We share your concern for questions of safety and ethics so we are only trying to accomplish a proof of concept right now.
\n\nThe goal is first to make normal human insulin\xa0using methods broadly similar to those used already, but keeping the information needed to do so open, avoiding proprietary restrictions on the work, and trying to take opportunities to keep things as simple, inexpensive, and easy to reproduce as possible. If we succeed on any of those points, we would then hope that an existing generics manufacturer might be interested in taking up the work to bring a generic version to market, and we would try to partner with one to do the necessary work to ensure purity and safety. The general regulatory rubric this would fall under is the biosimilar regime, which is mid-way between the rigor required in vetting an entirely new drug and that required of a copy of an old one made with strictly chemical means. This was the plan we outlined in our original crowdfunding pitch and remains our current thinking.
\n\nWe\'d welcome funding from the NIH or another large funding organization if they\'d have us but, among many other reasons to be skeptical about such a \xa0prospect,\xa0I doubt there would be enough that\'s novel about our work to qualify it as fundable science.
', u'post_id': 523, u'date': u'2016-11-30 22:13:50'}, {u'user_id': 4, u'title': u'Can be paralysing...', u'comment_id': 24843, u'content': u'It\'s a valid point, @Rune . Honestly I am really scared by the ethical implications of research,\xa0any\xa0research. They can be paralysing. Of course, if your tools are lasercutters rather bioreactors, and your goal is design rather than human health,\xa0the ethics become less scary.\xa0
\n\nIn practice, though, insulin is insulin. There are ways to test whether a chemical is, indeed\xa0insulin, or something else. And if it is, you are good: the same molecule should work in the same way, no matter its production process. Also, GMOs per se are not illegal in the U.S. Their attitude is very different from that of Europe. \xa0
', u'post_id': 523, u'date': u'2016-12-02 00:21:35'}, {u'user_id': 3331, u'title': u'What about ethics?', u'comment_id': 23568, u'content': u'\xa0@Noemi, @Alberto at the first glance it looks cool, but am i the only one that\xa0 get some associations to dystopia SF (e.g. the ^biohacker^ in minorityreport)?
\n\nIf I understand correctly we are talking about genetic manipulation to create an alternative to already fully disclosed, but patented medicine. Skipping clinical trials phases 1..4 to eventually offer this experimental product to the poor and\xa0 3world countries? Personally I\'m not sure if this is an ethically acceptable approach. How can you be confident that your homebrew dna is safe when evidence based\xa0 research has to spend years and millions? Isn\'t it like giving guns to children? @dfko Why can\'t you just get proper NIH funding? \xa0
', u'post_id': 523, u'date': u'2016-11-30 17:43:47'}, {u'user_id': 3370, u'title': u'This is exactly the kind of scenario that ', u'comment_id': 22018, u'content': u'This is exactly the kind of scenario that motivates our work! To get there it seems we may need to move beyond a manual protocol to automating the production at a small scale though - as you mention, even professional underground organic chemists need a broader base of skill to express and purify proteins.
', u'post_id': 523, u'date': u'2016-11-16 17:08:43'}, {u'user_id': 4, u'title': u'A resilience argument', u'comment_id': 20068, u'content': u'This is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.\xa0
\n\nLucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks \u2013 an additional advantage to your idea.
', u'post_id': 523, u'date': u'2016-08-27 09:24:17'}, {u'user_id': 4, u'title': u'What a wonderful idea...', u'comment_id': 19322, u'content': u'Wow, @WinniePoncelet and @dfko ! This is a wonderful vision: biohacking spaces all over the world collaborating on a difficult process like producing insulin.\xa0
\n\nIn the software world, we see this a lot. Turns out much software work is "packetizable": the whole is much\xa0more valuable than the sum of its parts, but a single part still has some value, and it can be built in relative independence from the other parts. Think\xa0Wikipedia: it is so great because it spans human knowledge, but I can work\xa0on my entry about, say, the Duchy of Modena with no need to coordinate with you guys as you edit the kin selection entry.\xa0
\n\n@dfko , is making\xa0open insulin that kind of work? Can it be broken down into pieces that Winnie could take and work on?\xa0
', u'post_id': 523, u'date': u'2016-11-16 22:09:28'}, {u'user_id': 2551, u'title': u'pinged you on skype. ', u'comment_id': 18707, u'content': u'on the account with the image
', u'post_id': 523, u'date': u'2016-11-19 18:49:17'}, {u'user_id': 3362, u'title': u"Let's Skype", u'comment_id': 18398, u'content': u'Great! Let\'s talk on Skype if you\'re up for that @dfko . I read @trythis \xa0is also interested in joining the discussion. You can find me under my name on Skype (or Twitter)\xa0and we can find a moment to call via there.
', u'post_id': 523, u'date': u'2016-11-19 12:27:07'}, {u'user_id': 3370, u'title': u"Thanks for following Winnie!\n\nWe've been occupied enough with ", u'comment_id': 17455, u'content': u"Thanks for following Winnie!
\n\nWe've been occupied enough with holding the lab work together that we haven't gotten around to tackling the aspect of establishing partnerships with any sustained effort. Though perhaps a half-dozen potential collaborators with serious interest have reached out, we're still at the point of initial discussions.
\n\nI'd love to discuss more about your hacker space in Ghent to see how you can get involved!
", u'post_id': 523, u'date': u'2016-11-16 06:43:25'}, {u'user_id': 3362, u'title': u'Network of contributors', u'comment_id': 14446, u'content': u"Thank you for sharing this\xa0interesting background info! I've been following the project from a distance for a while.
\n\nI was wondering:\xa0which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally.\xa0The biohackerspace in Ghent, Belgium where I'm involved surely would be.
", u'post_id': 523, u'date': u'2016-08-25 21:19:11'}, {u'user_id': 3, u'title': u'I hope OPENandChange application can help', u'comment_id': 12266, u'content': u'I would love to see this collective bid help you figure out manufacturing at scale. For the MacArthur foundation call \xa0on which I\'m hoping we\'ll work together,\xa0if we can spin the story to evidence the less\xa0experimental part of your work and a\xa0solid plan for reshaping markets\xa0it would be great. They\'re looking for durable solutions more than innovation, or so the briefing says. Either way, you win already just by being so daring.\xa0
\n\nAlso, not sure if this is valid in your case, but it\'s possible that fame comes earlier than success - so getting attention by being in the right places and company can help your mission.Hang in there\xa0
We did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work.
\n\nIt will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science/engineering\xa0work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next steps.
', u'post_id': 523, u'date': u'2016-08-24 21:23:17'}, {u'user_id': 3, u'title': u'277% funded!?', u'comment_id': 10213, u'content': u"Congrats for your work! The\xa0money quote for me is:
\n\nwhat we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions.
\n\nSo looking at your crowdfunding,\xa0people not only\xa0support, but actually\xa0fund scientific\xa0research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led?
\n\nHow long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?
", u'post_id': 523, u'date': u'2016-08-22 13:24:35'}, {u'user_id': 2569, u'title': u'see my link and document in the other wiki page', u'comment_id': 30439, u'content': u'https://edgeryders.eu/en/comment/25675#comment-25675\xa0
', u'post_id': 5976, u'date': u'2016-12-03 14:07:07'}, {u'user_id': 137, u'title': u'@Alex_levene. I agree that keeping lote makes it ', u'comment_id': 30304, u'content': u'@Alex_levene. I agree that keeping lote makes it a more reliable continuous proposal and gives the event hostory and credibility. and i would still use the format of the annual gathering to accompany the village as an important tool.\xa0
\n\nWhat do you think Noemi?\xa0how do we pitch that? if you want we can have a call on Monday to discuss it, i will have connection then
', u'post_id': 5976, u'date': u'2016-12-03 00:04:52'}, {u'user_id': 2569, u'title': u'@Natalia Skoczylas see', u'comment_id': 29719, u'content': u'@Natalia_Skoczylas see response above.
', u'post_id': 5976, u'date': u'2016-12-02 15:44:27'}, {u'user_id': 137, u'title': u'@Noemi, got it - how about we', u'comment_id': 29526, u'content': u'@noemi, got it - how about we simply skip the lote name and label it as its own event \xa0especially as it is a prototype. can @Nadia @Alberto @Alex_levene take one more look at it? besides taking off all the variety of names, is the\xa0call more or less ready?\xa0what should i think of or add at thia stage? \xa0when we all agree\xa0i will start publiahing it online.\xa0
\n\nI also replied to Gallway and Lille.\xa0lets see.\xa0
\n\nI will establish tomorrow a parallel wiki for the tour.\xa0
\n\nThank you for all the feedbakc and help! \xa0
', u'post_id': 5976, u'date': u'2016-12-02 15:04:20'}, {u'user_id': 2569, u'title': u'Agree', u'comment_id': 28721, u'content': u"I think that we need to have a clear distinction between the levels of our plans.
\n\nI would suggest 3 seperate levels:
\n\nThe grand plan:\xa0The Reef.\xa0This can be the headline information, or (i would suggest) it is our justification or reasoning.
\n\nThe main event:\xa0LOTE/COTE -\xa0we need to clearly decide which of these titles we will use for the next gathering. My feeling is we stick to LOTE to have continuity of event name/brand identity, but we subtitle it something like The Edge of Care. So. LOTE6: The Edge of Care. However if we need to call it Caring on the Edge to fit into the OpenCare structure\xa0then we use that, but have to make a effort to use that in all our comms. If we use LOTE then we can tap into the heritage of the events that have come before and how they have led us to where we are now.
\n\nFinally we want to talk about the central prototype plan:\xa0The OpenCare PopUp village.\xa0This is the interesting part that we really want to pitch. It's what makes LOTE/COTE 6 special and different from before. It combines everything that has been learned from 5 LOTE events as well as from the Open&Change workshops and the Open Care process. This is our core pitch to cities and what we want them to get excited about.
\n\nI would structure it like this: (in brief)
\n\nHi City.
\n\nWe want you to help us run and host our next LOTE, an international unConference and meeting of people from around the world who are exploring the leading edge of science, social policy and living. This one is about Care. We have spent the past 18 months studying cutting edge aspects of care from around the world. We want to come together to discuss, learn and investigate our findings, and we want to do it in your city.
\n\nWhat's so great for you? As part of LOTE/COTE we want to set up a brand new idea:\xa0The OpenCare PopUp village.\xa0This involves reaching out to local initiatives in your city and providing them with a chance to showcase their work in action as part of the big event. We have experience of connecting to these initiatives through our work with the Open&Change project that brought initatives together in Belgium, USA, Greece. We are looking to extend our network and also help you raise international awareness of the great work that citizens and organisations are undertaking in your city. We have a skill of finding and reaching out to organisations and initiatives that operate\xa0on the fringes as well as in the mainstream.\xa0
\n\nWhy are we doing this/Why your city? This is where we explain the idea of The Reef. How it's about creating a physical network that matches our online network. How it's about creating relationships with local governments and citizens. How it's about being hyperlocal and globally connected.\xa0
\n\nThat's my view. If people like it i'm happy to spend some time tomorrow updating the Wiki to this type of structure.
", u'post_id': 5976, u'date': u'2016-12-02 15:50:32'}, {u'user_id': 3, u'title': u'Signaling (over)use of terms', u'comment_id': 28440, u'content': u'Just leaving this here as a mental note. Could come handy later..
\n\nThe Reef as an overarching concept works great (thanks @Nadia for updating the wiki).
\n\nThe OpenCare PopUp village as a prototype also sounds super sexy.
\n\nLOTE and Caring on the Edge and other terms might need reconsideration.. they add a little bit of noise in terms of what we want to do, at least for now.
\n\nI would suggest we stick to max 2 good terms in the way we communicate. If I have a hard time reading through this and I supposedly get it, dont want to imagine others
Hi Natalia,
\n\nI have done a proof reading of the Call, i think it's very good. Have just cleared up a few parts where it was awkwardly phrased or really long sentences.
\n\nI'm not sure how you want to present this to potential client cities, but i would recommend putting the outcomes for the host higher up the document, certainly above what they have to provide.
\n\nI think it would also work really well to send it out as a dedicated newsletter to the whole community. It would make most sense to have a lead organiser who is already an ER member. Perhaps there is a member somewhere who hasn't been on the platform for a while who is perfectly positioned to make this happen?
", u'post_id': 5976, u'date': u'2016-11-21 08:28:07'}, {u'user_id': 137, u'title': u"I've created a short call for host in ", u'comment_id': 26922, u'content': u"I've created a short call for host in the wiki - please take a look and let me know what to add, what to change, how to make it look better, maybe pitch in some ideas. I will then create an event on fb out of it and send it out wherever I can.\xa0
", u'post_id': 5976, u'date': u'2016-11-20 21:15:02'}, {u'user_id': 2915, u'title': u'Lava Mae', u'comment_id': 24121, u'content': u"I could go over and have a look at them in action. \xa0Sometime after next week though. \xa0On Monday we move my 91 yr old mother out of her house into a much smaller apartment. \xa0She has been living there since 1986, and before that it was her parents' house since the 1940s. \xa0It's full of stuff she can't take with her and she isn't too sharp in the best of times, so this whole process has been a bit of an ordeal for all of us. \xa0I will stay with her for a few night next week and help her get more used to it all. \xa0I will be relieved when it is over. \xa0Should have happened years ago.
", u'post_id': 5976, u'date': u'2016-11-18 16:37:30'}, {u'user_id': 8, u'title': u'I think we should go ahead and do it.', u'comment_id': 22086, u'content': u'It\'s a great way of scouting locations for the settlement too
Super idea @Natalia
\n\nAre you up for leading on this?
', u'post_id': 5976, u'date': u'2016-11-18 10:46:02'}, {u'user_id': 137, u'title': u'I think it would be a fabulous event ', u'comment_id': 20678, u'content': u'I think it would be a fabulous event that some progressive city hall might be interested in supporting financially (maybe Austria, or Germany?) but also it provides a great chance to fundraise, as people can chip in for the projects they can see actually working, not just being exhibited (although we surely can do both). We could make a call as well and try to use some networks of cities to call for a host - not sure how successful\xa0this tactic is, but if we think we have enough time, we could try.\xa0
', u'post_id': 5976, u'date': u'2016-11-18 09:29:16'}, {u'user_id': 3, u'title': u'Pop Up Care Village whoa', u'comment_id': 17550, u'content': u'Very edgy, thanks for sharing Natalia. Ping @Johncoate for something in his area.\xa0Actually the more LOTE6\xa0will offer an opportunity to crowdfund project support through practical things, the better it will be. We were also considering the exhibition format, along your lines of thinking too.\xa0
\n\nI don\'t know if it is going to be Milano, it will depend on the fundraising opportunities and we\'ll probably go where there is the most support - whether it\'s Milano or somewhere else. @Nadia is sort of on tour already I think, in and out of London and visiting something near Galway soon. So yes, if there\'s an opportunity just shout, I\'m not sure how much structure this will have for the remaining of 2016, for good or bad.
', u'post_id': 5976, u'date': u'2016-11-18 08:22:26'}, {u'user_id': 137, u'title': u'I have an idea to add to LOTE6 ', u'comment_id': 15457, u'content': u'I have an idea to add to LOTE6 - or maybe an idea that could even determine the format.
\n\nIt\'s called Pop Up Care Village and it\'s organized by Lava Mae in San Francisco since a few years. it\'s an event that showcases available support for homeless people in the city and innovations around it, such as Lava Mae portable showers, barber shops offering free haircuts, or a pop-up shop that allows customers to purchase things that go directly to homeless people - Crack + Cider.\xa0
\n\nI think it would be fantastic to do something like this. Invite all the initiatives we know about, and make them not only talk, but actually demonstrate how change comes about and how little it takes to help others. It does not need to be only about homeless people - I can see a huge potential in building a great care event that provides a whole range of care related information and support to people.\xa0
\n\nI thought the location has been confirmed and it is Milano - has it changed? @Noemi
\n\nAlso, I can see you\'re preparing a map for a tour. I would be up for doing part of the journey and documenting ideas, I could visit some of the Slavic countries for example or the Baltics. And check the scene in Cyprus. I will keep my eyes open for relevant things in Indonesia as well - I hope to bring one or two great stories, especially because I am attending a Youth Forum for young entrepreneurs doing social business with participants from all over the world. There has to be some really exciting stuff coming.\xa0
', u'post_id': 5976, u'date': u'2016-11-18 07:35:26'}, {u'user_id': 3, u'title': u'Dropping this conference toolkit here for now..', u'comment_id': 10531, u'content': u'OuiShare just released this downloadable version.
\n\nI liked that:
\n\nHello @Henrike and @DavidFromAntwerp , I could not help noticing that your\xa0approach is closed to that of our friend Giulio Quaggiotto, except he applies it to social and economic development of regions:\xa0http://www.nesta.org.uk/blog/fall-love-solution-not-problem . What he does is not ask people "what do you need?", but "what are you already doing to solve this problem?", or even "what are you already doing that is good for your local community?".\xa0
\n\nWith a little help from Google Translate I looked into Flipped Job Market. It is really refreshing. What are your results so far, Henrike?\xa0
', u'post_id': 754, u'date': u'2016-12-01 16:53:37'}, {u'user_id': 3446, u'title': u'Undisclosed content ', u'comment_id': 21101, u'content': u'Undisclosed content', u'post_id': 754, u'date': u'2016-09-29 07:35:41'}, {u'user_id': 3293, u'title': u'Ready to share your story this Saturday', u'comment_id': 14058, u'content': u'Hello @DavidFromAntwerp
\n\nthanks to share your concern about this topic. On saturday we are organizing a workshop between people who want to better the system around care by sharing their vision and focus. Your imput would be wonderfull. If you can participate send me a message. All info can be found here:\xa0https://www.facebook.com/events/280924708934187/
', u'post_id': 754, u'date': u'2016-09-20 11:51:41'}, {u'user_id': 3, u'title': u'How can we help?', u'comment_id': 6600, u'content': u'Hi @DavidFromAntwerp my name is Noemi, and my story has more problems than solutions.
\n\nIs there anything that you are working on at the moment where Edgeryders can be of help? Right now many conversations here revolve around the question of how can groups of people and communities take better care of each other, with members sharing bits of their work or projects and hoping to find answers and advice. Have a look at the collection and see if there\'s something which interests you?
', u'post_id': 754, u'date': u'2016-09-20 06:02:33'}, {u'user_id': 3, u'title': u'Yes please', u'comment_id': 26961, u'content': u"Email would be great, I'm looking forward to meet Els and Dries. Thank you!
", u'post_id': 784, u'date': u'2016-11-30 10:43:28'}, {u'user_id': 3362, u'title': u'They are our neighbours', u'comment_id': 26049, u'content': u'Lab van Troje is the organisation behind the \'leefstraten\'. They are our neighbours/co-inhabitants of the site where our lab is, so I know them and have a (relatively) good idea of what they do and how. I can only scratch the surface though.\xa0I believe they share their experience and expertise regularly and internationally, so you should definitely contact them.
\n\nI\'ve nudged Dries to the Edgeryders platform a while back and he seemed to be enthusiastic, but I don\'t think he has interacted yet. Shall I put you in touch with them directly, over mail or otherwise @Noemi ?
', u'post_id': 784, u'date': u'2016-11-30 10:06:40'}, {u'user_id': 4, u'title': u'Watch out for privacy please :-)', u'comment_id': 24824, u'content': u'@MaisonDuPeuple you are very kind. I will now erase Els\'s private email address from the public website, out of respect for her privacy.
Els van Geenhoven was one of the persons behind Leefstraat Gent a couple of years ago, i think she is still behind it. @Noemi
\n\n[email address edited out by admins for privacy]
', u'post_id': 784, u'date': u'2016-11-30 07:40:00'}, {u'user_id': 3, u'title': u'Car-free streets?', u'comment_id': 19851, u'content': u'This article\xa0just came out about the rise of pedestrianism in Ghent and Brussels and the politics around it. It mentions a project in Ghent called Living Streets started in 2013, whereby "if a resident got support from 70% of\xa0their neighbors, they could apply to make their street car-free a few hours\xa0a day over the summer. Do you know anything about this and how it works, @Yannick @ybe or @WinniePoncelet ? It would be nice to get in touch with those behind it.. \xa0Thanks!
', u'post_id': 784, u'date': u'2016-11-29 19:51:00'}, {u'user_id': 3, u'title': u'Vraiment anim\xe9!', u'comment_id': 16846, u'content': u'Enchante, @MaisonDuPeuple (un username\xa0tr\xe8s inspir\xe9
Y a-t-il une partie du b\xe2timent Bourse qui n\'est pas actuellement utilis\xe9e? Pourquoi avez-vous pens\xe9 \xe0 celui-l\xe0 en particulier? C\'est vrai, chaque fois que je suis \xe0 Bruxelles je vois beaucoup de mouvement de rue dans la zone, pour ainsi dire (rue pi\xe9tonne, danseurs de\xa0rue etc). Est-ce que c\'est ca\xa0la raison?
', u'post_id': 784, u'date': u'2016-11-07 14:57:37'}, {u'user_id': 4, u'title': u'Tr\xe8s jolie id\xe9e...', u'comment_id': 7690, u'content': u'... mais est-ce que avez pens\xe9\xa0comment\xa0elle se peut r\xe9aliser? Est-ce que il y a quelque chose que nous pourrions faire pour la rendre en peu plus proche?\xa0
', u'post_id': 784, u'date': u'2016-10-07 21:22:51'}, {u'user_id': 2754, u'title': u'Practical networks', u'comment_id': 29964, u'content': u'@trythis @Matthias Good stuff and thanks for getting practical. Many of my efforts recently have been along the lines of building communication networks that amplify the real knowledge of a community. This is helpful info. Was reading about the Nepal work recently. Respect!
\n\nIn an art context,\xa0 I\u2019ve favoured systems that use cheap speakers & computing platforms - https://github.com/BelaPlatform/Bela/wiki/What-is-Bela%3F The ritualistic attempt to voice what has not been voiced feels suited to something more public like a sculpture\xa0- eg. recent attempt with\xa0small bird sculpture in Liverpool that had speakers inside it http://byzantium.chroma.space/about/
\n\nBut you\u2019re right that when it comes to spreading info & learning material, personal listening as you work is the way (& listening also cuts out the problem of not being able to study in the dark.) The mp3 system feels like it has really great potentials for education - and also distributing more taboo info like facts about AIDS and addiction treatment programmes.\xa0
\n\n@trythis I will pass this on to Ngala and some NGOs working with addiction & will be in contact if there\'s interest.
\n\nOne question - why not distribute cheap phones rather than mp3 players? Is it battery considerations? Phones seem to be altogether more useful and could simplify the problem of how to get the audio back?
\n\nOn the subject of making the content accessible but also inspiring & interactive I think there\'s interesting creative questions. It\u2019s pretty clear that \u201ddigging into a niche\u201d is going to be more effective as a distribution method (though realise this has to be proved if you\u2019re doing an academic study.) When it comes to replicating the \u201chuman touch\u201d that Ngala gave to his work through his supportive presence, it feels like powerful design of the audio experience can hold that sense of the encouragement and support of another person. Interested how you meet that creative design question? ie. recording compelling content and storytelling that addresses the listener in a way that encourages interaction. There\u2019s a few decades of experiments with this personal & empowering mode of address in the self help / meditation / change your life audio genre\u2026
\n\nI reckon the other big creative challenge is a really accessible intuitive and compelling site that hosts all the monologues collected and that feels \u201calive\u201d with the word of the community & updates often. Think there are some beautiful solutions evolving with immersive web and web VR. The clouds documentary http://cloudsdocumentary.com/\xa0 gives a nice example of fluidly exploring knowledge. But a challenge I\u2019ve encountered is that curating and ensuring that the content remains relevant can be a full time job. However perhaps if you\u2019ve got a strong interactive web design that role can be automated or distributed.
\n\n@trythis Do you envision asking listeners to speak back to a particular question? That feels like it would have some good focus to it.\xa0
\n\nOn translating - I\u2019m sure it\u2019s a necessity to have local collaborators and fluent speakers of the language in the core team whenever this kind of knowledge share project runs.\xa0Perhaps also\xa0there\u2019s something to learn from Duolingo and it\u2019s method of getting language learners translating. There are so many language learning initiatives to encourage people back into learning languages other than english. If you can connect with people who are learning the language and you have the need for spoken translation, there\'s a useful\xa0match.
\n\nSpreading info, language learning, cultural sharing and circulating cheap creative technology & making skills all feel like they go together well.\xa0
\n\nI\u2019ve met a lot of people working with teaching languages that are dwindling in numbers. Teachers of the Maori language and the Khoisan languages of the San Bushman people. They have often complained how young people are led away from learning about their own culture by fascination in smartphones / iPads / all things modern. Combining cultural knowledge & language learning with what is considered aspirational tech can be a big motivator. I\u2019ll expand on this in another post when further down the line with it.\xa0
\n\nPlease ping me if you post news on your projects & @trythis I\u2019ll connect you if I hear back from Ngala.
', u'post_id': 553, u'date': u'2016-11-27 20:07:51'}, {u'user_id': 2754, u'title': u'body mapping ', u'comment_id': 29082, u'content': u'Hi @Alberto - Alex\u2019s description is correct
\n\nYou can see examples of the some of the body maps created in this Youtube clip:\xa0https://www.youtube.com/watch?v=7wEdaCpT7lc
\n\nMary Anne explains TICAH\u2019s process in more detail in this interview http://practicalmattersjournal.org/2011/03/01/burris-interview/
', u'post_id': 553, u'date': u'2016-11-27 20:04:25'}, {u'user_id': 2551, u'title': u'see here', u'comment_id': 28968, u'content': u'http://reflections.org.np/wp-content/uploads/2016/04/jenny-sunil.jpg
\n\n[is there a way that I can drag & drop images currently? I seem to have to upload them which takes a lot of clicks.]
', u'post_id': 553, u'date': u'2016-11-24 07:44:56'}, {u'user_id': 2569, u'title': u"It wasn't clear to me, but if i ", u'comment_id': 28469, u'content': u"It wasn't clear to me, but if i have it correctly:
\n\nYou draw an outline of your body (real sized, or smaller) and then you connect personal experiences, traumas, memories etc to certain body areas by writing on them on the picture.
\n\nFor example, if you suffered a physical trauma to your right arm because of a car crash\xa0you might write Car Crash on the right forearm. It's a nice way of visualising the experiences that make up your life. Although they are highly personal, they can also create anonymity because they are pictures, not stories.\xa0
\n\nWe carry our scars around with us, but unless you tell people the story (relive the experience) we don't know the difference between the person who broke their arm falling down stairs when drunk and the person who experienced brutality or torture.
", u'post_id': 553, u'date': u'2016-11-24 06:29:03'}, {u'user_id': 4, u'title': u'What is "body mapping"?', u'comment_id': 27822, u'content': u'Apologies if it is clear to everyone else. Happy to follow a link if you give me one.
', u'post_id': 553, u'date': u'2016-11-23 20:42:53'}, {u'user_id': 2551, u'title': u'Thanks fot the links', u'comment_id': 27590, u'content': u'I may not use them straight away, but who knows what is around the next bend.
In terms of players I found a couple really cheap at banggood.com (with earplugs & cable!) but I had problems ordering so I used various amazons (B001B43J8E and B01LAE19D6 ) for now. I actually want very limited capability on the players to start with so that you have to listen through a lecture to get to the infotainment/music part behind it. The cheapo players are fine for that. The other thing that is partially a feature is their crappy 110mAh battery. Currently I am testing the common failure modes, and it also looks like it will be possible to run them without battery directly from either a bucked 12V battery, or a boosted low voltage source (AAA), and of course sunny PV. All of those options (and more) will be in a full kit. In terms of wearing them - they work fine under a hat or headscarf. With 15g they should not be much of a nuisance around the neck either.
\n\nAs for mp3 recorder I think you are right - there is no really cheap option. I\'ve bought this ASIN B01G8OK1O6 for 20$ and it works very well so far. However at that cost I can\'t hand them out to just anyone, but I first have to find reliable candidates. Probably I\'ll also have to work with other recording formats in the beginning. There are a couple of other somewhat decent recorders around 10-15$ but they don\'t save into mp3 or aren\'t exactly inuitive.
\n\nRegarding your translation (I assume mostly into audio format) this is what I would do: Go around at the schools and ask the teachers if they can recommend someone who has a nice voice and good pronounciation and English skills. Ugliness, bad eyesight, physical deformity, rural upbringing is all a big plus. Probably won\'t hurt if you let 3-5 try translating and recording the same piece. Then find someone above average knowledgeable in the actual field work who has a somewhat deeper understanding of the issues and let him/her review the recordings. That is your first team. Then make second team like that and use it to translate some sections of the first piece back into English. Eventually you will probably need a Nepalese speaker who picks up enough audacity (the software) to process this intermediate product into a decent lecture - this person can sit anywhere though.
', u'post_id': 553, u'date': u'2016-11-24 19:09:10'}, {u'user_id': 5, u'title': u'Nice one!', u'comment_id': 27569, u'content': u'Thanks for the pointer, Alberto. Actually @trythis was the inspiration for the Rasoberry Pi local media servers after the Nepal earthquake last year, and this way also for Pocket University. Lots of inspiration coming from that guy I\'d be interested to utilize a small casting / pocket university like setup for teaching better coffee farming in @28.0295096,84.4467343,14676a,20y,41.63h,62.8t/data=!3m1!1e3!4m5!3m4!1s0x39953fa2e0beb76d:0xeb467b0ef0d2342b!8m2!3d28.1652914!4d84.6322156?hl=en">Hansapur, Gorkha, Nepal. Which is the village for this year\'s trial of our "direct international sales of Nepali coffee" project. Just a small project for now, with a friend from last year going there around next week and then again in February. The problem is obviously getting the coffee farming content together, in Nepali \u2026
Edit 1: For extending smallcasting to two-way communication, it would of course be perfect to have a small cheap MP3 player with recorder. But does not exist as far as I know. Feedback recording via mobile phone is possible for >80% of people in low-infrastructure regions, but of course voice quality is an issue then. Most times, I get back to using old-ish smartphones since they are available for <15 EUR used in Europe. Battery capacity is an issue of course \u2026
\n\nEdit 2: Two hardware inspirations for @trythis which I found for Pocket University: (1) there are 10-20 MP3 player models which can be fitted with an aftermarket open source firmware \u2026 of course good to mod / extend the player. (2) there are cheap MP3 players in neck-worn form factor, which to me seems the best to allow working while listening, without interfering with cables, or earplugs falling out all the time etc..
', u'post_id': 553, u'date': u'2016-11-24 11:10:00'}, {u'user_id': 2551, u'title': u'Yeah they are related', u'comment_id': 27320, u'content': u'We combined our idea soups on the topic for the Nepal Hackathon but I think both of us had similar ideas bouncing around for year before that.
\n\nSmall casting is just another riff on the concept which would share a lot of the same hardware and some of the same content I assume. After reading around a lot of the World Bank issues it seemed to me a good MVP-style approach that could disintermediate and also flank their ongoing projects.
\n\nOne point that set it apart from PU is that this one is more geared towards information flow BACK to the party doing an intervention. The idea is that staff will get a handful of mp3 players (and colored pearls for stringing up) with say 2-3 different sets of "directions" to traverse the OFFLINE social networks to carry on them at all times. When they come across an "interesting person" (e.g. very altruistic behavior, subject to certain condition, etc.) they can, without a word, hand them the mp3 player and things can expand from there. With the right incentives (perhaps including m-pesa) there is potential for large amounts of very detailed quant (coded with the colored pearls) + qual that should be relatively undistorted.
\n\nBy default one could have most of the players in circulation doing more of a PU for poor young women with the appropriate content and a good amount of infotainment mixed in. And of course 1-2 tracks for repairing/charging etc. the players, 2-3 tracks for getting the feedback from the women, and perhaps another couple (later in the process) for building the capability to translate/record additional lectures into the local language.
\n\nI currently have envisioned about 100 mp3 players (shared among 2-3 people each) with appropriate support to keep them going for a couple of months minimum in the field which runs slightly above 1000 USD. Of course it\'ll be critical to work on ways to reduce the technical attrition rate and balance/channel "misuse" into something arguably helpful.
\n\nThen it would be interesting to see how results vary between a "helicopter distribution" vs "digging into a niche". And of course on the horizon is the ability to plug these collected monologues or discussion into a platform like ER. That way you\'re not only getting the "word on the street" but also the "word at the water hole" with some lag in very rural places.
', u'post_id': 553, u'date': u'2016-11-24 08:18:43'}, {u'user_id': 4, u'title': u'Small casting => pocket university?', u'comment_id': 26964, u'content': u'@trythis this reminds me of the concept of "pocket university" proposed by @Matthias .
These stories here are so well written and impressive - and this one particularly so.
\n\nIt still took me a few attempts to endeavour it, because more often than not it\'ll tempt you to throw everything down and want to help with what the author is working on. This one is no exception.
\n\nHowever this time I\'ve been busy with something that could make a contribution that is interesting to your case ( @kate_g ) . I\'ve been meaning to do it as a little story aswell but it really is only hobby format now - and I\'d need someone with other background to apply it.
\n\nTo keep it really brief I\'ll just lay out the bare bones, though in application it could be tweaked in very different directions (education, journalism, anthropology/ethnography).
\n\nIn terms of concept think the opposite of broadcasting*, where one signal (on one schedule) goes out to everyone. Here I try to reach niches, perhaps indirectly, as much on their schedule & terms as possible, and I listen to them (ratio of listen/tell can be tweaked).
\n\nIn terms of hardware I am currently sitting on 10 cheapo mp3 players and some mp3 voice recorders. The idea is to put some audio content on a small memory card (perhaps also some visual content e.g. on playing card size). This costs 2-3 $ and can hold days worth of structured audio content. The strucure of the content is important because I hope to turn the play+listener into a temporary agent (a little tolkeen\'s ring style). So you would have incentives there for the player (or several) to traverse the community networks in a mix of chance, human behavior, and programming, and hopefully end up in someones lap who may have been incredibly hard to find using other methods.
\n\nYou can then get the recorder to this person (or have the person respond via a phone recording in a "relatively 1st world context") and document things in long form (8 GB - up to a week). Parts of this will be amiable for speech to text conversion. ( @brenoust that is why I asked the last time we talked)
\n\nOnce you get the text corpus you can open it up the the digital domain ( @amelia can then probably mine this from an enthnograpic/anthropologic perspective) while it can remail fully anonymous. I also have a concept in mind for quantitative feedback which is similarly simple tech for users (colored beads on a string) but machine readable.
\n\nThat way you get quant + qual abstractions but you can still jump to the original content fairly easily (provided you speak the language). It ought to scale quite well, especially if you can reuse some of the players.
\n\nThe motivation for this came from a number of directions (OLPC griping, importance to capture emotion in human interaction, World Bank issues/capability building (two way!)) so I\'ve played through a couple of different concepts that can perhaps be divided by organizational/technical aspects, content/didactic aspects, and info flow direction/volume.
\n\nI\'m currently working on putting together a prototype kit that could plausibly run for a couple of months (and with minor support perhaps years) as a replacement for a "sit-in school" in remote areas that have trouble with teacher absenteeism ( @nadia perhaps interesting to Olivier @ Co - also best of luck in Paris!) and people being too poor to abstain from manual labour for so long (and of course blind, illiterate, etc.). At the moment I\'m checking the recharge curves to see how long the cheapo players will survive before someone needds to know how to fix/replace/work around the battery. If any of you see potential there I\'d be happy to discuss it and set it up as a proper story.
\n\n*that is why the working title is currently "small casting". Suggestions welcome
@WinniePoncelet\xa0Thanks. Wise\xa0succinct summary. Apreciated. \xa0
\n\n@Noemi\xa0I\'ll write at the December meet. & yes, we had problems getting tickets too. Last batch of tickets go\xa0on sale 2016-11-25 10:00\xa0(Fr). Good luck!
', u'post_id': 553, u'date': u'2016-11-22 21:17:29'}, {u'user_id': 2754, u'title': u'Powerful', u'comment_id': 20994, u'content': u'@Alex Levene I will watch these films. Even watching the trailers it\u2019s clear that the film is pushing against people\u2019s desire not to talk about what happened. Which is a very human way of dealing with confounding horror and disgust. Using performance and re-enactment to go right into\xa0what happened is almost unbearably powerful.\xa0
\n\nJust read your post over at\xa0https://edgeryders.eu/en/the-culture-squad/how-can-the-arts-side-of-culture-feed-into-the-work\xa0A great thread! How did you get on with the application?\xa0
\n\nIt feels ridiculous in many ways for me to talk about innovating new digital networks when this year I have spent little time online (apart from a Facebook flurry during Brexit vote & November the 8th).\xa0I\'ve missed a lot of posts & sharing. Too much work in VR headsets for too many years means that my stamina for interacting through screens is at an all time\xa0low.
\n\nBut the networks I have engaged with are some sessions I\'ve been running on Hacking Reality\xa0and a group set up by Charlotte Pulver in London to get muddy and clear out springs on Hamstead Heath. The\xa0outdoor emphasis of my life at the moment\xa0shifts my interest in networked technologies - more emphasis on\xa0Augmented Reality, GPS for content, lasers and light, alternative communication systems\u2026 Feel you intuitions on care and art are on the right track.
\n\nHope some Edgeryders will be about at the Chaos Computer Club in Dec to meet on\xa0care and going forwards into 2017.\xa0Will share some more developments\xa0in the new year too & make a concerted effort to login.\xa0
', u'post_id': 553, u'date': u'2016-11-22 20:59:55'}, {u'user_id': 3362, u'title': u'Thanks for the story & links', u'comment_id': 15934, u'content': u"This\xa0comment sums it up for me. Conversation and understanding turn coping into progress.
\n\nThe process can be\xa0a catalyst towards peace of mind and balance, which is a healthier attitude than striving for an unattainable bliss where there's no trace or memory of the negative experience. The former is resilient for the future, the latter is very fragile. When you start purging negative emotions, there's usually some collateral damage and you end up taking down\xa0good things as well.
\n\nThank you for sharing this Kate, and thanks for the extra links Alex.
", u'post_id': 553, u'date': u'2016-11-22 20:52:45'}, {u'user_id': 2569, u'title': u"Director's Cut", u'comment_id': 12609, u'content': u"I watched the Directors cut of the film and at nearly 3.30hrs it was one of the most confusing and harrowing experiences on film i've ever had. That said, there is a moment towards the end where you start to see under the mask of the protagonists. There is a moment when you realise that this really has affected them and they are questioning their decisions. It's really small but very powerful. I think that's why the filmmaker went back to the same subject to make a follow up film. Which i haven't seen yet.
", u'post_id': 553, u'date': u'2016-11-24 06:14:03'}, {u'user_id': 3, u'title': u'"The Act of Killing"', u'comment_id': 11634, u'content': u'I found that documentary very very scary in its realism and portrayal of cold blood grotesque crimes and the fact that\xa0there seemed to be no redemption whatsoever, no healing, no sense of humanity at all. Perhaps I need to watch it again, but there is no way I could make sense of what happened by the end of it.. I wonder if those inhabiting that space could. ever. and what that tells us.
\n\nThank you @kate_g for the piece, I hope you do get to write the second one and also that we\'ll meet at ccc. We seem to not be able to buy tickets this year because of high demand. Let\'s see.
', u'post_id': 553, u'date': u'2016-11-22 20:38:00'}, {u'user_id': 2569, u'title': u'really enjoyed this comment:', u'comment_id': 9118, u'content': u'"Popular culture tends to talk about purging emotions, as if emotions are toxic material that needs ejecting from your system, but what Ngala\u2019s work shows is that the magic is in the courage to speak honestly and the grace of being heard: that\u2019s when emotions turn into understanding"
\n\nCertainly a lot to think about.
\n\nThank you for sharing your work with us and teachigng me about Denis\' initiative.
\n\nI wondered also if you were aware of the work Joshua Oppenheimer has done on film with\xa0http://dogwoof.com/theactofkilling and\xa0http://dogwoof.com/thelookofsilence on the Indonesian genocide?
', u'post_id': 553, u'date': u'2016-11-22 11:33:35'}, {u'user_id': 3331, u'title': u'Future direction', u'comment_id': 26917, u'content': u'Idea for discussion: OpenCare.CC could provide a \u2018hub\u2019 for triage of people seeking OpenCare solutions and who to contact
\n\n@ybecasteleyn@skynet.be\xa0@alberto.cottica@gmail.com\xa0
', u'post_id': 5913, u'date': u'2016-09-21 08:27:24'}, {u'user_id': 3331, u'title': u'hi @Alex Levene\xa0, nice to meet you, I ', u'comment_id': 25761, u'content': u'hi @Alex Levene\xa0, nice to meet you, I dont understand if your long post is a rant defending defects but I think this motivations overrules personal opinions
\n\nhttps://edgeryders.eu/en/edgeryders-dev/task-6800
', u'post_id': 5913, u'date': u'2016-09-22 23:52:08'}, {u'user_id': 2569, u'title': u'also Hi', u'comment_id': 25740, u'content': u"Hi Rune, we haven't engaged in any dicussion before, so i realised i should 'officially' say hello and welcome.
\n\nIt's really great that you're keen to help develop and improve the way the ER site works for users. Definitely a positive place to be. My ignorance in all areas 'code' is a large stumbling block. My skills are more in the soft/event arena.
", u'post_id': 5913, u'date': u'2016-09-21 12:49:31'}, {u'user_id': 3323, u'title': u'challenge responses prioritised, others come later', u'comment_id': 25654, u'content': u'....as evidenced by the fact that I\'m coding this 2 months after the fact! I am prioritising challenge responses, so if you think things have important info in them that need to be coded sooner rather than later, designate them challenge responses. otherwise, they will (hopefully) be coded eventually, but are not a priority.\xa0
\n\n@Noemi\xa0
', u'post_id': 5913, u'date': u'2016-11-26 21:25:46'}, {u'user_id': 2569, u'title': u'i will think about your suggestion', u'comment_id': 25648, u'content': u"Until i know what connectivity i will have in Ethiopia i can't commit to anything this year.\xa0
\n\nBut your hinted suggestion is noted and i'll have a serious think about it.
", u'post_id': 5913, u'date': u'2016-09-24 15:53:02'}, {u'user_id': 2551, u'title': u'I thought about mobile access a little...', u'comment_id': 25646, u'content': u'and you will generally have the problem of screen size and worse input via keyboard. On the other hand you usually have a camera on the mobile device nowadays. So the direction I would think in mobile access is the following:
\n\n- image based comments (you take a picture of a sketch + a few words and upload that instead of text), this also allows participation of e.g. illiterate people and complements the predominantly text form data.
\n\ntry to allow for a very simple yes/no answer function.
another common use case will be 2-3 lines of context explanation and a link (lots of data/info possible with little input)
I would love to see hashtags integrated (https://www.drupal.org/project/hashtags) into the #platform at some point as that would allow to restructures conversations. As far as I understand we can use them already - they just don\'t work yet.
', u'post_id': 5913, u'date': u'2016-09-26 09:55:51'}, {u'user_id': 2551, u'title': u"Isn't it an entry point for that?", u'comment_id': 25643, u'content': u'Its just not the entry point, since this does not use a linear structure. Or am I misreading your intentions?
', u'post_id': 5913, u'date': u'2016-09-26 09:58:49'}, {u'user_id': 3331, u'title': u'Offtrack', u'comment_id': 25640, u'content': u'I hoped this could be an entry point\xa0gathering\xa0information relevant for\xa0people starting\xa0an open care initiative. \xa0Sigh
\n\nI give up
', u'post_id': 5913, u'date': u'2016-09-25 10:31:28'}, {u'user_id': 2569, u'title': u'i concurr', u'comment_id': 25633, u'content': u"More power to the arm of anyone who can and will make improvements.
\n\nI would also benefit from the tool allowing me to jump back into a thread at the point i left it.
\n\nI'm a strong beliver in John's 'omnivorous' approach to the website. I try to read all of it (even the parts i don't comprehend)
", u'post_id': 5913, u'date': u'2016-09-24 15:51:22'}, {u'user_id': 2915, u'title': u'Sure I would', u'comment_id': 25621, u'content': u'Given the scarce resources available to create and improve this site, I think it works pretty well, though it definitely requires you to develop some new habits that are peculiar to this site, as a workaround\xa0to some of its inefficiencies. \xa0This applies to the mobile and the desktop interfaces. \xa0I don\'t use my phone for it, but a lot of people do and the challenges of creating great and sophisticated interfaces on very small screen real estate \xa0are substantial. \xa0As to the "obsolete" comments, there is no reason to get rid of any of the site\'s history and a lot of reason to keep it. \xa0But to make it so this site is very smart about remembering where you are in any given conversation and taking you directly to it, that is something a smart and dedicated Drupal programmer could create and implement. \xa0Absent the money to insure its creation, we offer encouragement to anyone who wants to take it on.
', u'post_id': 5913, u'date': u'2016-09-23 23:59:00'}, {u'user_id': 3, u'title': u'What are obsolete comments?', u'comment_id': 25596, u'content': u'I may have missed the point.. I get they are older comments, but why obsolete?
\n\n@Alberto: I assigned the wiki\xa0to both the Research group and Op3n Community group, would that work? Or do you need it to be specifically a Challenge Response content type?\xa0I thought we\'re also coding parts of the content in Research - i.e. case studies\xa0we shared frugally, or conceptualizations of opencare etc..
\n\n@Alex_Levene:\xa0great comment\xa0above,\xa0sharing your personal\xa0experience while really relating to other\'s.\xa0Spoken like a true peer and\xa0community manager\xa0(hint hint \xa0@johncoate would\xa0approve I think, wouldn\'t you John?\xa0
Thanks for letting me know @Alex Levene. I have corrected the link could you please retry?
\n\n(I think I was to quick saying nice things about google docs, I keeps giving error messages \xa0tonight)
', u'post_id': 5913, u'date': u'2016-09-21 20:03:41'}, {u'user_id': 2569, u'title': u'Messiness is part of the charm', u'comment_id': 25333, u'content': u"Hi Rune,
\n\nI understand your frustration with the site, when i first came to Edgeryders i found that it was rather labyrinthine and not structured towards easy comprehension. The site has undergone a number of iterations to get to where it is now and i think that we have a site that is much smoother and more aesthetically pleasing than when i joined the community a year ago.
\n\nI agree that the mobile access is a problem, and it seems there are people working in the background to solve that. My view is that when i log in on my mobile i just want to read a comment or post. I'm probably not going to sit and write a response on my phone because i prefer to think deeply about my responses and respond in depth. My view is that i don't need to site to act as a social media platform. I want depth of field, not speed here.
\n\nI quite like that the 'obsolete comments' remain in the system. Every few weeks i spend a day digging through the old projects, conversations etc on the site. It helps me see how things have developed and where the issues have been. I gain a much greater understanding of the path, the battles and the 'big picture' when i get lost down the old blind alleys and dead ends.\xa0I think if we moved to a position where we only showed the finished product and not the working out we are giving a false impression, plus i imagine it would have negative impacts on both the 'openness' and the ability to analyse and extract quality data from the platform. But i wouldn't know anything about that specifically as i'm not a computer network scientist. I'm a poet and creative producer.
\n\nI too am a big fan of the Google Docs set up. We use it to set up some of the Culture Team documents, and i think Alberto has had some successes using it for the OpenandChange application. It seems to work best for input from between 4-5 active collaborators though. I do think that it does decrease the number of people who engage with the document and\xa0there are some on ER that are disincentivised to use Google products. Where input is wanted\xa0from as many people as possible i think the messy solution on the site is still best for collecting that information from everyone.
\n\nThose are my initial thoughts on your points. The Google docs link doesn't connect to a file so i can't participate in the process much further right now.
", u'post_id': 5913, u'date': u'2016-09-21 12:43:51'}, {u'user_id': 3331, u'title': u'Then action needs to be taken', u'comment_id': 24803, u'content': u'@alberto, I understand the point perfectly. Sorry. The issue is that I have evaluated how much time (40-80 hours) I have spent in edgeryderspace, and as I see it the site needs rethinking.
\n\nIts impossible to view and edit on mobile (and\xa0\xa0It has severe accessibility problems, but thats another issue)
I really get lost in conversations because obsolete comments remains.\xa0
I\'ve just started working with living documents and I have already esperiences of extreme effectiveness in collaborating online with google docs (hate to say they really got it right where M$ got it wrong)
The plan is to upload the content of the doc here if possible. Until then I went for a practical solution to get things done now.
\n\nWhat do you think?
', u'post_id': 5913, u'date': u'2016-09-21 08:34:00'}, {u'user_id': 4, u'title': u'Disappears from the ethnography', u'comment_id': 23472, u'content': u'@Noemi , transforming the node away from challenge response makes it disappear from the ethnography.\xa0
\n\nIn theory it can be brought back in by assigning it to the Op3nCare Community, but when I do that I lose comments. Ideas?
', u'post_id': 5913, u'date': u'2016-09-20 16:17:27'}, {u'user_id': 3331, u'title': u'Starting the guide', u'comment_id': 19741, u'content': u'Personally I find this site/wiki\xa0is born messy and I propose turning to a google document solution
\n\nhttps://drive.google.com/open?id=125lKsi-Wm4Gq0AWkIEHD2SAOGaiiV9C8VykS1bf-Jzc
\n\nPlease join in. I have already started inserting headlines and comments from @Noemi, @Woodbinehealth, @steelweaver
', u'post_id': 5913, u'date': u'2016-09-21 20:00:25'}, {u'user_id': 3, u'title': u'This would deserve being turned into a guide sometime.', u'comment_id': 13940, u'content': u'@Rune, I took the liberty of converting this challenge response\xa0into a wiki as I keep coming back to this whenever I (re)read other stories.\xa0Making a quick note for now:
\n\nThere are many points already being made in OpenCare about circumventing existing system regulations. Aside those you link to there is:
\n\nStepping outside the commercial model\xa0in a donation based\xa0informal acupuncture clinic, by @steelweaver.
\n\nHelliniko clinic without legal or taxable status - which is one of the reasons why\xa0they are\xa0not accepting donations in money.
', u'post_id': 5913, u'date': u'2016-09-09 17:45:06'}, {u'user_id': 3331, u'title': u'Can we afford to neglect this issue?', u'comment_id': 9978, u'content': u'We have some expert input here: https://edgeryders.eu/en/comment/23839#comment-23839 so if @marcomanca could synthesize his experiences it would be great
\n\nOther posts are also having some brilliant points that could be moved to the document.
\n\n*So some regulatory framework is needed..
', u'post_id': 5913, u'date': u'2016-08-22 18:12:10'}, {u'user_id': 2551, u'title': u'Political economy of policing', u'comment_id': 29959, u'content': u'I haven\'t had time to go over all content here yet but I just came across this presentation that may be relevant for a number of reasons.
\n\nPolicing in Post-Conflict Societies, pulled from the transscript and slightly edited:
\n\nservice and his reply was cross and i
\nHi @concrn @maymay and I will be at the OPENandChange workshop we\'re organising at the @Woodbinehealth space in Queens on october 2:\xa0https://www.facebook.com/events/208119996269998\xa0.\xa0
\n\nAhead of that the 1 hr crowdconference on twitter later this month is a good opportunity to meet everyone, ask questions, draw in more people. So by the time we are in the room, we\'re already made some progress etc:\xa0https://edgeryders.eu/en/agora/crowdconference-to-tweet-and-share-openandchange-20-sep-at-1700
\n\nThere\'s already people showing up with UI/UX skills. From a pm:\xa0"I was looking over that buoy app ux test video. Have y\'all been using it? I\'d like to talk to y\'all more about visual design for it. I mostly do digital/visual design in the fashion space, but I think my ui/ux could be helpful for this. Have you seen signal? That\'s friends of ours who developed and designed it; I think they did a really good job of user-accessibility though for a somewhat foreign concept of encryption, and have also been able to make a platform that can scale. Eitherway, we can talk more when you\'re in town. Hyped to hear more about edgeryders."Also a friend of mine working with infosec will be joining us.
', u'post_id': 717, u'date': u'2016-09-12 11:10:00'}, {u'user_id': 3390, u'title': u'Software/Training collaboration', u'comment_id': 29071, u'content': u'I feel like we could work well together on software dev. We are both open source but perhaps our team and your team could collaborate.\xa0
\n\nWe have also developed a compassionate responder training curriculum that may work well for friends who want to be more prepared to respond to eachother in crisis.\xa0
', u'post_id': 717, u'date': u'2016-09-11 10:11:08'}, {u'user_id': 3367, u'title': u'Great resource', u'comment_id': 27804, u'content': u'@Nadia @maymay, Thanks for all the pings and sorry for the delay. \xa0This seems like an amazing tool. \xa0I think it could be helpful for us to create a larger community of resources. \xa0I\'ll message you all privately to learn more about how we could apply it to the situation here. \xa0And also to plan a potential visit/event! \xa0
', u'post_id': 717, u'date': u'2016-08-29 23:12:16'}, {u'user_id': 3331, u'title': u'Got to look at it and a bug', u'comment_id': 26030, u'content': u'Thanks @maymay, I just spent a 2 minutes in vain trying to figure out what it does. Need more time.
\n\nBug:
\n\n@Everyone:\xa0There is a bug when people make @Someone in the comment. Then the link in the \'Edgeryders.you have been mentioned\' mail contains the link to the @Someone and not to the comment.\xa0
', u'post_id': 717, u'date': u'2016-08-25 17:21:20'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 25787, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-25 17:00:25'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 25265, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-22 15:58:44'}, {u'user_id': 3331, u'title': u'Triage, clinical database and networking', u'comment_id': 24641, u'content': u'Forgive me for skimming and missing info already there but I have a question
\n\nFor providing good opencare \xa0(check the post\xa0No Humane ghost in the machine)\xa0focus should be on shifting administrative tasks from healthcare professionals (called facilitators/mentors in our case), so maybe an App (Buoy?) could let the participant (the patient) check in, filling e.g. private data (address etc), restricted data (pathology, symptoms etc) and public data (satisfaction data, achievements etc.) as well as allocating time slots. What\'s the state of the art of software for that (@Eireann Leverett, @Alberto,@maymay,@Nadia\xa0)\xa0?
', u'post_id': 717, u'date': u'2016-08-22 15:48:24'}, {u'user_id': 4, u'title': u'Ethical coding', u'comment_id': 23226, u'content': u'This is good sense ethical coding. Well played, @maymay .
', u'post_id': 717, u'date': u'2016-08-19 13:40:24'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 23134, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-17 00:02:28'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 22106, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-16 23:34:45'}, {u'user_id': 137, u'title': u"Thank you for this story, @maymay - I'd ", u'comment_id': 20730, u'content': u'Thank you for this story, @maymay - I\'d like to ask you about the ways in which you decide on what functionalities to add to the service? Both on receiving the feedback and requests from the users, but also what criteria do you apply when you pick some of these and make work?\xa0
\n\nAnd if you ever want a couch somewhere in Europe, I\'d be happy to provide you with one;) I constantly move, but usually there is space for guests where I live.\xa0
', u'post_id': 717, u'date': u'2016-08-16 13:38:02'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 19258, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-19 10:52:38'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 19257, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-20 05:06:33'}, {u'user_id': 8, u'title': u'Signed up and yes re NYC', u'comment_id': 19256, u'content': u"Let me know if/when you will be heading there and we can try to work around that. I think I'll be in the US around last two weeks of september. Might be later though.
", u'post_id': 717, u'date': u'2016-08-19 10:42:04'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 19254, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-19 10:33:31'}, {u'user_id': 8, u'title': u'The social contract, self care etc', u'comment_id': 19249, u'content': u'Am checking out the links you shared above for where and how to contribute to buoy. Code is not possible for me. But I can try to keep a lookout for use cases and useful information/articles etc. Maybe also do some advocacy for it by including it in public presentations (do you want me to mention your name when I do btw? Didn\'t at re:publica - @Mike_Gogulski had just pinged me about it ).
\n\nSo two things.
\n\n1) I had a chat with the Woodbine crew about setting up an event at Woodbine around autonomy, health and interdependency. A convening, but not just for talking. A combination of showcasing/discovering some relevant OS tools, aggregating information resources and working out some social contract/model for supporting work on their further development. I am up for putting time into making it happen.
\n\n2) I came across an article which you/me/others may find useful. One of the comments had a link to an information resource that @Woodbinehealth might want to include in their resource centre:\xa0 "a page called ThereIsHelp with pointers and resources for people worldwide dealing with suicidal feelings or a variety of other complicated mental health issues". I also found it useful for unpacking questions relebant to Boy and community driven care in general...In Wikipedia is not therapy,\xa0 the author decribes the emergency response system the Wikipedia foundation has put in place for dealing with signals of distress amongst editors:
\n\n"This emergency response system was established in 2010 by Philippe Beaudette, the former director of community advocacy who recently left the Foundation to work at Reddit. On his LinkedIn profile, Beaudette notes that during his seven years overseeing the various Wikimedia communities, he and his team responded to almost 500 threats of suicide and other imminent harm to people and property. A recent report from the Foundation\u2019s talent and culture team noted that, in one quarter, they handled five suicide cases that were escalated through the emergency email address.
\n\n\u201cIt\u2019s a stressful thing, for sure,\u201d Earley says. \u201cMy blood pressure goes up. It can catch me at any hour of the day. I do feel the weight of dealing with that. But it\u2019s definitely something that feels like it\u2019s important to do. We have the technical infrastructure in place to make it as painless as possible on our end.\u201d
\n\nHow do we effectively deal with the additional preassure, or emotional stress, that this kind of commitment brings into our lives?
', u'post_id': 717, u'date': u'2016-08-18 20:33:23'}, {u'user_id': 4, u'title': u'"Map of emergence"', u'comment_id': 19237, u'content': u'I do remember. The person in question is @MoE aka Stefano.\xa0
', u'post_id': 717, u'date': u'2016-08-19 13:38:08'}, {u'user_id': 8, u'title': u'ok thinking about the shelter bit', u'comment_id': 19236, u'content': u'I have a couple of ideas, will get back to you after fleshing them out a bit more.
', u'post_id': 717, u'date': u'2016-08-19 13:43:21'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 19234, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-19 10:41:18'}, {u'user_id': 8, u'title': u'Drupal to buoy, maybe the other way around?', u'comment_id': 19232, u'content': u'I know someone in the community produced a wordpress plugin from Edgesense, a piece of software which was only available as a drupal module. So they must have looked into the drupal-wordpress differences. @Alberto you know who this is, can you remember the handle?
', u'post_id': 717, u'date': u'2016-08-18 20:37:15'}, {u'user_id': 4, u'title': u'Keep an eye out for opportunities', u'comment_id': 19219, u'content': u"With a bit of luck we might be doing stuff in Ireland in 2017. This might be a chance to scrape off some resources for a Buoy prototype, with would probably include a Drupal module. Let's stay alert.\xa0
", u'post_id': 717, u'date': u'2016-08-18 13:02:10'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 19200, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-18 05:40:02'}, {u'user_id': 4, u'title': u'Impressed', u'comment_id': 19153, u'content': u'More power to you, @maymay . This is a very well-thought through service. What I love most is your response team concept: it works even at the level of, say, 10 friends that live in a 2 km radius from each other. Then, like the best networks, it can be\xa0scale-free:\xa0suppose I am using Buoy here in Brussels, I have my little response team etc. Next up, I\xa0visit my friend in Milano; suddenly I am detached from my response team, but if my friend is also using Buoy, she and I can be on each other\'s response team. Also, she can ask her own response team to opt in in my own, and viceversa I will be part of theirs. Voil\xe0: everyone in my friend\'s response team now has skeletal Buoy coverage should they ever come to Brussels \u2013 and of course I can ask my response team to add them, too. The scale-freedom there is that my friend and I become hubs, stringing together my local network in Brussels and hers in Milano. I can\'t emphasize how powerful this is: Buoy is viable at a small scale.\xa0
\n\nI am definitely intrigued by the idea of trying it out when we next deploy in a geographically defined space: this could be Galway, actually. I see in your FAQs that you have already thought of Buoy as a suicide prevention tool. This meets a pressing need in Galway and the West of Ireland in general. Ping @Thom_Stewart and @Finbar247 \u2013 I think Bernard McGlinchey is also on Edgeryders, but I cannot find his handle.\xa0
\n\nI would never presume to undermine your militant stance. Whatever your reasons, they led you this far, and this is more than good enough as far as I am concerned.\xa0
', u'post_id': 717, u'date': u'2016-08-17 08:49:56'}, {u'user_id': 3, u'title': u'+1 to different ways of explaining what you do', u'comment_id': 18401, u'content': u'Hi and needless to say seeing the super response you\'re getting already, you guys rock.
\n\nJust to agree that finding a common language might go a long way with groups that may not be as radical/ adamant in their approaches to not cooperate with state led operations, but rather expose them as irrelevant. I find this quite strong and while some edgeryders will resonate immediately, the rest of us may not know just how to engage even if they resonate with the premises (and keep a different view on the ways, for example me, I got the most out of\xa0the FLOSS vanilla interview).\xa0
\n\nAnother group with which\xa0you guys could click immediately is the Tbilisi activists\xa0led by @Nick_Davitashvili,\xa0who broke new ground in their own way of enabling flood relief efforts or\xa0stopping the construction in their largest city park. There could be\xa0potential for new tech \xa0- they had to make up a process for coordination, so they\xa0enabled coordination\xa0through an emergency twitter account texting to dumbphones and worked exceptionally well, as Nick\'s explained in his tedx. But this wasn\'t p2p, only\xa0for\xa0broadcasting as far as I understood..\xa0
', u'post_id': 717, u'date': u'2016-08-17 06:58:21'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 17588, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-15 23:15:52'}, {u'user_id': 4, u'title': u'Way to go! ', u'comment_id': 15560, u'content': u'Buoy makes a ton of sense, @maymay . Congratulations on the idea. By the way, you can spin it either way: it works as politically loaded displacement of state activities, but it also works as "social innovation"; people helping each other as a\xa0complement\xa0to public sector service. The police can be out fighting crime, but if you are being bullied in school you probably won\'t call the cops. And this is without even considering that, in some circumstances, response has to be fast to be at all useful!
\n\nQuestion: would it make any sense to prototype this on Edgeryders? Probably not, we are too geographically sparse... any brilliant idea?
\n\nBy the way: I love the 200 anarchist-led refugees centres in Greece. I would love to see a writeup of that under opencare. @Pavlos , do we know anyone? I see two of them are in Thessaloniki...\xa0
', u'post_id': 717, u'date': u'2016-08-15 12:44:53'}, {u'user_id': 8, u'title': u'Connecting people with people?', u'comment_id': 13742, u'content': u'Hey @Rune sorry for the slow response, somehow I had managed to miss this. So Amir mentioned two things which may be helpful. \xa0You reminded me I have to post the notes from the conversation withwith him. Doing it now!! will post a link to it here later today.
', u'post_id': 717, u'date': u'2016-08-30 07:06:41'}, {u'user_id': 3331, u'title': u'More please', u'comment_id': 13704, u'content': u'@Nadia, your post is excellent and useful. I\'ll have to check out and understand how to implement\xa0"Common Problems you can solve yourself section". As you already know we look for a way to get in contact with local (Milano) people to demonstrate feasibility and then later "have a distributed presence as a compliment to the physical space itself". Also because participants (living with disabilities) will have limited mobility and time. Any ideas of best \'crack\'?
', u'post_id': 717, u'date': u'2016-08-22 15:37:22'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 11456, u'content': u'Undisclosed content', u'post_id': 717, u'date': u'2016-08-15 22:58:30'}, {u'user_id': 8, u'title': u'Building a community of users & contributors ', u'comment_id': 8632, u'content': u'Ping @Woodbinehealth, I think you guys should have a look at this.
\n\nOne of the challenges of alternative care provision is evolving tools that enable it around the needs of communities that use them, and support those who develop them. I had a conversation with Amir Hannan, a GP working in the UK, about how chronic care requires patients to self-manage for good health outcomes (writeup coming soon). Over 15 years he has built a practice based website to encourage an support his patents gain a better understanding of their health to better enable automy and self-care. You can see the site itself here: www.htmc.co.uk (especially the "Common Problems you can solve yourself section - see menu on the left)"...
\n\nAfter reading both this post and @maymay above I started thinking about something that maybe we could build into the OPENandChange process.
\n\nWhat if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?
\n\nI think cracking this could unlock a lot of community knowledge and support, as well as free up resources for providing health and soccial care services to a currently underserved individuals/ communities. Plus it could care for the (far too few) people with deep tech skills that are dedicating themselves to building tools contributing towards fixing the kinds of community resilience challenges we are attempting to tackle...
\n\nAnother member of the community who might be interested in this is @Eireann_Leverett who does information security and has experience with tech-related privacy/security issues which is a concern. And not just for high risk users e.g. activists...
', u'post_id': 717, u'date': u'2016-08-15 10:20:16'}, {u'user_id': 3, u'title': u'Performative cooking :-)', u'comment_id': 25394, u'content': u"Sounds like the edge of dinners.. these aren't just leftover ingredients, but leftover food (potentially cooked) if I understand well! Whoa. Thanks for the reference, Natalia.
", u'post_id': 798, u'date': u'2016-11-17 09:36:21'}, {u'user_id': 2569, u'title': u"This sounds fantastic. I'd love to visit thast ", u'comment_id': 24982, u'content': u"This sounds fantastic. I'd love to visit thast next time i'm in Berlin (hopefully soon)
\n\nI've been thinking about organising something like this in the UK. Especially with that sound/music/performance narrative to it. I will certainly check that out.
", u'post_id': 798, u'date': u'2016-11-17 08:43:15'}, {u'user_id': 137, u'title': u'Thank you for compliments, @Noemi! I have something ', u'comment_id': 23981, u'content': u'Thank you for compliments, @Noemi! I have something to add to this collection of great ideas and initiatives. In Berlin, there is a group of young Philipino/Brasilian\xa0artists called Nowhere Kitchen who cook with surplus food. But there is so much more to it - they engage the people in chopping and preparing, but they take over the cooking process, so we do not end up with random, kind of awful food. Their recipes were stunning and combinations of tastes surprisingly delicious. The whole evening a guy was jamming to it some ambient/psychedelic stuff on guitar, and when the serving time came, they did a whole spiritual\xa0performance before we started eating. I\'ve been there, and some people from the street came around to join in. It was beautiful! And I think in such a delightful form eating leftovers can be dignified, and very political. (OK, some say the food didn\'t come out always as great as I remember it -\xa0that\'s probably the rule of cooking with random leftovers).\xa0
', u'post_id': 798, u'date': u'2016-11-17 08:06:02'}, {u'user_id': 3472, u'title': u'hook me up', u'comment_id': 22592, u'content': u'Thanks, @Noemi
Please hook me up, I\'d love to help, however much I can, prior to and during the event.
', u'post_id': 798, u'date': u'2016-11-16 23:37:39'}, {u'user_id': 3, u'title': u'Also, Disco Soupe', u'comment_id': 21750, u'content': u'Thanks @WinniePoncelet for the connections, I hope we get to learn from each other. Checked out Juice for Change and surprise: recognized @ElienShr Elien, are you involved in it, or can you tell us more?\xa0
Also in Bxl, I remember we partnered up with Disco Soupe for Living on the Edge 5, and it was pretty cool. Very professionally managed event even though the setup was new to the team too!
\n\n@saby thanks for feedback! the next event is on Nov 26th, I wont be there but you know your way. If you want to volunteer a few hours with the team ahead of the actual event\xa0let me know and I\'ll hook you up.
', u'post_id': 798, u'date': u'2016-11-11 14:58:57'}, {u'user_id': 3362, u'title': u"There's a lot happening in Belgium", u'comment_id': 19863, u'content': u'A much-needed initiative and a fun night at that, congratulations!
\n\nIn Belgium there is a lot of stuff happening around food surplus. Plenty of young people are launching projects and little companies around the idea. Mainly in Brussels, but also in Ghent and other cities. There\'s a an overarching organisation\xa0that connects and supports all the initiatives: Food Surplus Entrepreneurs Network. They share experience, knowledge, connections and raise awareness.
\n\nThe last weeks they did a succesful campaign for recuperating surplus apples, Juice for Change. Fruit leftovers are a major problem for Belgian farmers at the moment. From idea to execution and launching their crowdfunding it took about one week, with plenty of volunteers pitching in.
\n\nI hear similar community dinners popping up here and there, but I haven\'t been.
', u'post_id': 798, u'date': u'2016-11-11 13:16:31'}, {u'user_id': 3472, u'title': u'participant - very impressed with the event', u'comment_id': 14250, u'content': u"I'm Sabina, an Environmental Protection master's student from Cluj, Ro, who has attended the event.
\n\nI was honestly very impressed with the event, I congratulate the initiative and the work behind it and even if I was there only to help with the preparing of the food, tasting of the delicious soup and amazing carrot cake, I couldn't help but notice and fully enjoy the community feeling roaming around while slicing potatoes and washing dishes while the food was being prepared by the chefs and volunteers.
\n\nEven though my thesis is precisely on Food Waste, and I've gained knowledge on the issue while researching,\xa0I was so sad to find out about the baby spinach, lemon and other products that were left to rot next to one of the hypermarkets' dumpsters in town.\xa0
\n\n... I can only be happy the Food Waste Combat team came 'to the rescue' and I hope I will be able to attend more of their events (and give a helping hand)\xa0that would slowly bring awareness regarding this burning issue that we only see the smoke of... yet.
", u'post_id': 798, u'date': u'2016-11-10 18:55:46'}, {u'user_id': 3, u'title': u'Conveners very precious resource indeed', u'comment_id': 10666, u'content': u'The guy wearing the shirt is Nicu, he was actually the\xa0chef coordinating everyone
Regularity also means lowering coordination as you fall into some clear processes - now a lot of the time has gone into thinking about the concept, drafting invites etc. All this would be taken care of in future events.. But the people who seamlessly make stuff happen - like Cami aka Ponyo, or @Natalia_Skoczylas \xa0or @Yannick from what I know are very precious.
Once you have the building blocks, stepping into a friendly strucure is much easier. \xa0I surprised myself thinking about how cheap it is to be part of\xa0stuff like this:
\n\nWow, excellent stuff! And, as a native of Emilia Romagna, I\xa0really\xa0want the "Praise the Lard" T-shirt the guy at the center of the photo is wearing.
\n\nMore seriously: this does sound as something that could be repeated, and possibly even made permanent or semi-permanent. The scarce resource is, as always, the conveners: the people who would bother to email and call and put up the wiki and phone the local supermarket manager who is happy to help but would definitely not get on the wiki or the Google group... even for you, it\'s fun to get out and do this, but will it still be fun next year if you do it every Saturday? What other fun things will you have to forego in order to do this?\xa0
\n\nI wonder if @janetgunter might have some wisdom to share from the Repair Project.\xa0
', u'post_id': 798, u'date': u'2016-11-07 22:44:25'}, {u'user_id': 3331, u'title': u'Different', u'comment_id': 15289, u'content': u'The above proposal is about an app for mobility navigation rather than a wheelchair issue. However a few people has contributed to a specifications doc. Next up is implementation. Anyone?\xa0
', u'post_id': 779, u'date': u'2016-11-16 17:24:35'}, {u'user_id': 4, u'title': u'Done that! ', u'comment_id': 6722, u'content': u'In fact you were involved in that conversation... see the comments, too:
\n\nhttps://edgeryders.eu/en/step-up
', u'post_id': 779, u'date': u'2016-10-04 15:43:59'}, {u'user_id': 3403, u'title': u'a very powerful testimony indeed. took my breath ', u'comment_id': 19783, u'content': u'a very powerful testimony indeed. took my breath away
\n\nthank you for that @alkasem23
', u'post_id': 797, u'date': u'2016-11-10 09:18:34'}, {u'user_id': 3069, u'title': u'volunteer', u'comment_id': 17304, u'content': u'As an Arabic English speaker, am happy to volunteer for that.
', u'post_id': 797, u'date': u'2016-11-14 17:31:40'}, {u'user_id': 4, u'title': u'Great piece! Can I help?', u'comment_id': 14061, u'content': u'Great work @alkasem23 . Very insightful. It has potential to be one of the better posts on Edgeryders yet.\xa0Small thing: this would be even better if we clarified some parts of the translation (what does it mean to\xa0"put the platforms in the service of semiconductor scientists and intellectuals"?). If you are up for it, we could organize a call between and someone who speaks both Arabic and English. This will make this post into a powerful testimony. What do you say?
', u'post_id': 797, u'date': u'2016-11-08 15:03:22'}, {u'user_id': 3, u'title': u'"altruism is still there"', u'comment_id': 8763, u'content': u'Thanks for this piece, I am amazed at how optimistic you are @alkasem23.
\n\nIf you can tell us more about the project "Grace Conversation" to share medicine in community it would be great. Or is there anywhere we can go to read about it?
', u'post_id': 797, u'date': u'2016-11-01 05:40:44'}, {u'user_id': 3, u'title': u'Readiness to reduce one\'s "valuable" time', u'comment_id': 14116, u'content': u'Nice to meet you @Tree_of_Life! I just came across this piece, and funny I am thinking along those lines too these days, as during a community dinner\xa0in my hometown (FoodWaste project) I realised (again!)\xa0how cheap volunteering\xa0can be.. even in terms of that valuable time you mention.\xa0
\n\nHow do parents make this leap from being busy raising their child to working for greater community benefits - that also help raise their child, but not so obvious for many perhaps..
', u'post_id': 747, u'date': u'2016-11-08 19:38:42'}, {u'user_id': 4, u'title': u"Intriguing, but... I can't read Greek!", u'comment_id': 10391, u'content': u'Hello and welcome, @Tree_of_Life. This seems really intriguing. It looks like your group is not zeroing in one one purpose ("we repair old computers that were being thrown away and donate them to local schools", but rather try to help each other live fulfilling lives. From collecting shoes to theatre, excursions to workshops you seem to be doing a lot of things, focusing on the people in the group rather than on any one activity.
\n\nAdditionally, it seems you are listing\xa0yourselves\xa0(the parents) among the beneficiaries. This also very intriguing, and\xa0close to the vision we are pursuing with opencare: people self-organize in communities to take care of each other.\xa0
\n\nThese are impressions based on this post. Did I get it more or less right?\xa0I checked out your links, but as I cannot read Greek I could not get any extra information.
Hi again @shajara!\xa0
\n\nI was reading this article and thought you might find it informative - results from a study on Irish students from 22 universities saying that a third go through mental distress and less than 1 in 4 look for support. So worrying. I\'m now trying to get hold of the original study.
\n\nA mental health community initiative in Ireland that we know of is\xa0Cosain\xa0- a an organic healing centre by peers of all ages,\xa0running as a prototype\xa0in the city museum! - curious what you think.
\n\nAlso new in the conversation since you were last online - a volunteer led organisation running twitter chats on mental health. Definitely check them out, maybe you can do something together as they are always looking for hosts!
', u'post_id': 724, u'date': u'2016-11-07 20:34:48'}, {u'user_id': 3374, u'title': u'Thank you!', u'comment_id': 27449, u'content': u'@Noemi, Thank you for clarifying that! I would appreciate that list, so I could reach out directly.\xa0
', u'post_id': 724, u'date': u'2016-08-30 19:39:53'}, {u'user_id': 3, u'title': u"Nope, no direct group messaging I'm afraid", u'comment_id': 27317, u'content': u'@Shajara, the way to go is either let them know in public by posting another story - they receive notifications on email, or go to their profiles and message them via the Contact tab. I can send you a full list of their profiles. I\xa0think this last option is the fastest.
', u'post_id': 724, u'date': u'2016-08-29 14:25:38'}, {u'user_id': 3374, u'title': u'Shit Show ', u'comment_id': 26953, u'content': u'@Nadia Thank you for shairing this with me! I had heard about it breifly before, but didn\'t really have a sense of what it was. Seeing the video and reading your description has definitly helped that! I think this is a cool project and would love to see some collaboration with my university and the students behind this. Also, it\'s a happy coincidence that my cohort\'s next semester is in Berlin, so half of our students will be there till mid December. I will reach out ASAP and see how we might bring this to Minerva!
\n\nAlso, I am still a bit new to EDGERYDERS. Is there a way to contact all of the students together directly, like a group messaging feature?
', u'post_id': 724, u'date': u'2016-08-28 21:40:07'}, {u'user_id': 8, u'title': u'Perhaps this approach designed by our students could help?', u'comment_id': 26034, u'content': u'This project was developed during Hacking Utopia - a three month course on product design for social and demographic change. The course format was developed by Prof. Susanne Stauch (@Susa) \xa0and Nadia EL-Imam (me) in a partnership between UDK (Berlin University of the Arts) and Edgeryders:
\n\nThe Shit Show is an interactive pop-up exhibition designed to make the sensitive, \'taboo\' issue of mental health more present and approachable to the public. Psychological struggles are still stigmatized, making it hard to reach out for help. We want to offer an alternative way for people to engage with the topic and develop mechanisms for support and resilience.
\n\nMental illnesses are one of the most widespread disabilities worldwide. In Germany alone, 4 million people are affected by issues like anxiety or depression. Yet, it\u2019s a secret we all share. Seeking help for psychological struggles is still strongly associated with shame. Even being sad or stressed or unproductive is seen as personal weakness. As a result, many people find it difficult to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder.
\n\nIt\u2019s easier to open up to someone who has similar problems and can empathize. But how to identify the people that can offer support when everyone tries to hide their struggles? Most people that are in emotional distress don\u2019t decide to seek help until they have been in increasing pain for a prolonged amount of time. Only about 35% of people suffering from depression are receiving treatment. On average, 11 months have passed before even these few seek out professional help. The Shit Show is one approach towards addressing this pressing situation.
\n\nThe students : Omri Kaufmann, Pauline Schlautmann, Luisa Weyrich and Nele Groeger are in here so you can contact them directly) (@Omri_Kaufmann , @Pauline , @LuisaWey and @NeleG )...\xa0I know they\'re very passionate about the topic, and would love to bring this initiative to other Schools and Universities. They\'re even running a crowdfunding campaign to finance the costs involved. Perhaps there is room for collaboration
@Noemi Thank you for sharing student mental health nurse twitter chat. It\'s a bit confusing to naviagate, but I will spend some time exploring it!
', u'post_id': 724, u'date': u'2016-08-27 12:06:02'}, {u'user_id': 3374, u'title': u'Communities are tricky. Internet definitely complicates things.', u'comment_id': 17278, u'content': u'Hello, @Alberto ! I think I may have not been clear in that while my school takes classes through the online platform we do live together during the school year. Though you do raise an interesting point of how to facilitate a similar sense of community through online communities. Have been a memeber of a few I think a big mistake a lot of groups try and do is replicate in person activites, like a bunch of people just hanging out through webcam. And to me that will always fall short of the live in person dynamic. I think one answer is to organizng physical met ups based off of promitiy of people, which works to an extent.
\n\nBut for me the best online communities I\'ve been in have used the fact the memebers are so spread out to there advantage. I think a good example of this is Under 30 Changemakers, which hosts discussions\xa0and training through google hangouts. Instead of having broad web-chats they pre-choose discussion topics based off of community interests or world events and invite their memebers to bring in their perspective. That way people come in already invested in the topic and feel more connected to the community by interacting with members who share their passions. \xa0Also, another activity that seems to go well it when people sign up to be matched with another random member for a skype session. The excitment of not knowing who you\'ll met but that you have this one community incommon is pretty enaging.\xa0
\n\nHope this helps!
', u'post_id': 724, u'date': u'2016-08-28 21:26:38'}, {u'user_id': 4, u'title': u'Online complicates matters', u'comment_id': 14631, u'content': u'Welcome, @Shajara ! This school of yours\xa0sounds really advanced. One thing I don\'t understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?
', u'post_id': 724, u'date': u'2016-08-27 10:05:45'}, {u'user_id': 3, u'title': u'Twitter chat formats', u'comment_id': 7096, u'content': u'Welcome, @Shajara!
\n\nI was doing a little research the other day into this group called WeCommunities \xa0for health professionals - they organise dedicated regular twitter\xa0chats\xa0and \xa0a recent one\xa0was "What is it like being a student mental health nurse?" They have it all archived should you want to have a look. I myself need to learn more about how it works, but it seems like there is a need for coping and sharing lessons as a professional too.
', u'post_id': 724, u'date': u'2016-08-25 12:37:48'}, {u'user_id': 3, u'title': u'Done!', u'comment_id': 12726, u'content': u"As I'm not in Greece and my only contacts there are those you met already here on Edgeryders, I did the simplest thing and donated. But will keep on spreading the word, and looking forward to your eBook! Safe travels,\xa0Ybe.
", u'post_id': 795, u'date': u'2016-11-07 19:32:34'}, {u'user_id': 3403, u'title': u'thx @Noemie, ', u'comment_id': 11782, u'content': u'for your suggestion and here\'s the link again http://www.traumatour.eu/2016/09/30/to-thessaloniki-and-back/ and also this one http://www.traumatour.eu/2016/11/01/last-call/
', u'post_id': 795, u'date': u'2016-11-03 18:15:17'}, {u'user_id': 3, u'title': u'The thing I like most about the Trauma Tour', u'comment_id': 8060, u'content': u'..is that it lowers the barriers to this type of knowledge. It\xa0is about learning\xa0and starts with conversations, not therapy, which sounds much heavier and almost like you have to be a "patient" or close to one\xa0to access it. Who wants to be a "patient"\xa0and can walk in confidently? Probably very few people, or not even those who need it the most.\xa0Even the word "trauma" is so heavy that I can see how a friendlier setup and human face can help break the ice. Don\'t know if it\'s a strict deontological choice, but you might want to try an experiment where you dont use the word at all in your communication (for example for an event), you\'d only use "pain that doesn\'t go away" or something..Then you explain the proper terminology while at it. Who knows, maybe you get even better results.
\n\nThank you for working on this piece Ybe. Quick heads up: your link to the list of things we can help with does not work.. so waiting. With @Nadia and a little luck we might meet you in Greece in December!
', u'post_id': 795, u'date': u'2016-10-26 07:04:26'}, {u'user_id': 3, u'title': u'Real communities', u'comment_id': 18117, u'content': u'Hey @samadhi.0110 and @pjones, it\'s been a while and in the meantime mental health became quite a topic here in OpenCare, with many people showing interest and sharing their work. You might find interesting what WeMentalHealthNurses are doing as they bring people on twitter to discuss topics of interest for both caregivers and patients, and refine the idea of MH nursing in a very dynamic community. \xa0Just a thought, hope your work is progressing?\xa0
', u'post_id': 676, u'date': u'2016-11-07 19:03:52'}, {u'user_id': 3414, u'title': u'Integral Care', u'comment_id': 15679, u'content': u'Hallo Peter!
\n\nThis looks very much like a care model relatet to integral aspects as in "Integral Theory". For insiders there ist not much to mention... you are on the right pass, following the right train of thougt.
\n\nWe do have a simolar model in Mind but not only focussing on health, rather integrating health, learning, knowlege and cohabitation into a larger scheme.
\n\nSo we want to encourage you to not only reserach this and create a virtual environment but work with real communities, who get supported by your ideas.
\n\nBert
', u'post_id': 676, u'date': u'2016-09-27 17:34:22'}, {u'user_id': 3285, u'title': u"Hodges' model", u'comment_id': 10970, u'content': u"Hello Alberto,
\n\nThanks for your interest and response. Ah! It sounds like you have tried to access\xa0the old website p-jones.demon.co.uk which was valid from 1998 up to last summer when Demon closed as an ISP.
\n\nSorry about that. My current studies will include posting some introductory information. I've just organised new hosting.
\n\nI'd be happy to try to answer questions and\xa0will add a note on my blog / and to the papers\xa0I have re. the expired website.
\n\nKind regards,
\n\nPeter Jones
", u'post_id': 676, u'date': u'2016-05-09 23:13:20'}, {u'user_id': 4, u'title': u'Welcome, Peter! ', u'comment_id': 7346, u'content': u'Hello @pjones, welcome to Edgeryders. I checked out briefly your blog: congratulations, you really are very active!\xa0
\n\nBut where\xa0is the model? I read your 2004 paper: I am a non-professional and\xa0may simply lack the knowledge\xa0to process it, but what it looks to me is that you are discussing\xa0a model that was presented somewhere else. There is a link at the end of the paper, but it points to a site no longer active.\xa0
\n\nWould you have a "Hodges model for dummies" somewhere?
\n\nPing @markomanka, he\'ll know a lot more than me.\xa0
', u'post_id': 676, u'date': u'2016-05-09 18:55:08'}, {u'user_id': 3, u'title': u"Care work is embedded in more formal work than you'd think", u'comment_id': 24339, u'content': u'I think you would enjoy this @careday-team. I re-read it and thought of your angle, which allows for many explorations left and right:\xa0an article making a case that\xa0most of the work people do is on each other! so care work is just too unseen and mostly in underpriviledged jobs, genders to a minimum. Working classes as care classes, that\'s a strange idea that never occured to me:
\n\nEven in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women\'s work \u2013 looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects \u2013 accounts for a far greater proportion of what working-class people do when they\'re working than hammering, carving, hoisting, or harvesting things.
\n\nThis is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers\xa0recently had to explain\xa0to indignant commuters, "ticket takers" don\'t in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused.
\n\nCaring too much. That\'s the curse of the working classes.
', u'post_id': 749, u'date': u'2016-11-03 11:41:00'}, {u'user_id': 8, u'title': u"In Sweden it's picking up but still there is a difference ", u'comment_id': 20938, u'content': u"Not sure what the data is on what percentage of fathers take parental leave and how long. I'll as around if you want?
", u'post_id': 749, u'date': u'2016-09-28 11:02:34'}, {u'user_id': 3, u'title': u'Care workers at risk of poverty', u'comment_id': 17209, u'content': u'Thanks for sharing the links, from the ministry\'s communication I picked up on something new: "The question of women\'s employment is thus closely linked to the question of the social organization of care work" So the risk is that the more care work you do around the house, the more you risk being paid\xa0less because of inability to take up fulltime work and provide for yourself at an old age..?
\n\nOn the other side,\xa0unpaid care\xa0work it\'s somehting many of us do in our lives - out of love, pleasure, even a sense of\xa0duty as Alex pointed out in his story of refugee\xa0volunteering. For a lot of people care - and I\'ve seen older generation women in my family, care is indeed something they "can\'t switch off" from because it is where they find meaning in their lives.\xa0After retiring, they, and not their husbands were the ones who were able to take on paid care roles (eg caring for small children) as those skills remain valued at an old age. Indeed underpaid, and yet the only surplus income in the family.\xa0
\n\nDo other policies like paternal leave work in Germany? In Romania it\'s currently at only 10% of fathers taking it \xa0
Hi @careday-team, welcome.\xa0
\n\nDid this happen already or is it an idea?
\n\nI can see the argument working in some communities more than as a general campaign - for example where this care gap is degenerative in that it correlates with\xa0lack of self confidence in women, or housework\xa0burnout, or even domestic violence in the worst cases.. \xa0
\n\nI haven\'t done\xa0awareness raising campaigns, but it could be that for the impact you\'re looking for a deep value based argument would be more easily turned around by anyone with a difft agenda. \xa0\xa0
\n\nIf you can insert links to the stats or numbers you\'re referencing it would be great!
', u'post_id': 749, u'date': u'2016-09-20 06:24:11'}, {u'user_id': 4, u'title': u'Hard to argue with that', u'comment_id': 22646, u'content': u'Socialization is the elephant in the room and teenagers are in no mans land
\n\nWell, this is for sure. I guess our school system was designed\xa0in a context where socialization happened outside the school and peer structures were robust. And maybe they are not that robust anymore, and anyway teenagers have very little time. This, by the way, is danah boyd\'s take on teens and social media in It\'s complicated: families saturate teenagers time with what she calls adult-approved activities, and they escape into social media to Just Hang Out.\xa0
', u'post_id': 796, u'date': u'2016-11-03 11:35:08'}, {u'user_id': 3468, u'title': u'totally agree!', u'comment_id': 22212, u'content': u'I don\'t find what you say nihilist at all @Alberto , and I agree with your observations. Education is above all a human relationship, in fact a proxy of parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there\'s one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important,\xa0from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.
', u'post_id': 796, u'date': u'2016-11-03 10:45:49'}, {u'user_id': 4, u'title': u'The currency of attention', u'comment_id': 20565, u'content': u'I may have a nihilistic view, but it seems to me that there is no conclusive evidence for any educational method to be inherently superior to others. The typical story is this: young, smart, charismatic teacher becomes dissatisfied with how things are done in schools. He or she proceeds to start a new school that immediately outperforms the average existing school on all relevant parameters.\xa0
\n\nMaybe the methodology really did the trick. This, however, does not explain why\xa0all\xa0methodologies seem to work so well: Montessori, Steiner, Ecole 42, home schooling... So, here\'s another possibility: young, smart, charismatic people who care so much about teaching to leave a secure job to invent their own way of doing it are likely to be better than average\xa0teachers. They would do well with\xa0any\xa0methodology.\xa0
\n\nThis would explain at least one case: that of the abandonment of the "notionist" paradigm in the West, supported by solid research results. Children schooled in the new way, more attentive to developing creativity and social skills, outperformed their traditionally schooled peers. But sure enough, 30 years later Western universities\xa0were flooded by graduates from very traditional Asian schools, and they kicked the Westerner\'s asses to kingdom come.\xa0
\n\nIt does not make sense that creativity-oriented schooling is both superior\xa0and\xa0inferior to traditional cramming-oriented schooling. What\'s going on here could be\xa0regression to the mean. If you generalize any methodology to the mainstream\xa0you are going to get no more than average results, because this is what happens with average teachers teaching to average learners. I expect that the same will happen to generalized Arduinos in schools.\xa0
', u'post_id': 796, u'date': u'2016-10-30 22:02:09'}, {u'user_id': 3, u'title': u'Teachers or newcomers into teaching?', u'comment_id': 17580, u'content': u'Enlightening take on technology education, I may be quoting you on twitter here and there, just a heads up
@Big_Bang_Schools might add something to this and what Alberto writes - given that they have experience\xa0hacking\xa0"normal" educational institutions but have also gone on to found\xa0a new educational platform with its own type of schools and comprehensive framework. Angelos, I\'m curious: which one did you find to be most needed or more effective?
', u'post_id': 796, u'date': u'2016-11-01 05:54:56'}, {u'user_id': 3362, u'title': u'Changes in educational methods', u'comment_id': 15297, u'content': u'I like this idea of neighborhood driven education. In my home town we are also planning a project in this direction, so I will follow these stories\xa0with interest :).\xa0
\n\nThe correlation between how you teach and what a child learns and ultimately\xa0which kind of person\xa0it becomes is a hard one. There\'s so many different opinions on what is the best way of educating and each seems to have its merits. In practise there\'s already quite some alternatives - at least in Belgium - like Steiner and Freinet schools. My experience with those schools is limited and I have not seen miracles. How does\xa0your philospophy\xa0relate to the existing alternatives?
\n\nLike @Noemi says, it\'s a hard case for radical changes. That\'s not necessarily a bad thing. There needs to be room for experiment, but education is important enough that we should\xa0prevent major failures, even for a small group. The norm will shift slowly as educators themselves learn. I think it\'s that learning aspect that makes the difference. I hear the saddest stories while working with children. Usually it\'s\xa0educators lacking insight in themselves and their practise, as well as a very static approach to their profession. They are factory workers: follow the protocol, complete the checklist, get good numbers.
\n\nHowever, more and more\xa0teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn\'t complain, I am\xa0surfing that wave, but STEM has become\xa0a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people\'s heads, so it\'s a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium\xa0are implementing\xa0smart boards, apps, school fablabs etc.\xa0without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc.\xa0rely on technology to avoid changing their behavior. Ironic, because reality is the opposite.
\n\nWe do new biology education and that is\xa0our trojan horse:\xa0we can hide a new method in the new technological content that we bring. This also means that these changes to the methods\xa0won\'t be too radical. What we do\xa0is accepted as a technological innovation, but hopefully the changes in method will\xa0add\xa0to the slow collective learning process on different methods.
', u'post_id': 796, u'date': u'2016-10-30 15:47:07'}, {u'user_id': 3, u'title': u'Already up and running?', u'comment_id': 8262, u'content': u'Hello again, @Altamirula .\xa0Your ideas about the future of learning seem more than reasonable to me, and in fact just yesterday I was at a conference where an educational policy maker kept referencing the idea of schools as learning hubs -\xa0questioning how to get there. Those of us in the room thought\xa0there\'s little hope for \xa0a radical makeover, except maybe through public-private partnerships - if you do like TOPIO in Greece - the girls in Thessaloniki do neighborhood youth empowerment through artistic expression, pretty beautiful it seems, hav a look?
\n\nWhat stage is Future Tools at, can we help in any way? Are you in Spain now? I can\'t tell from the post..
', u'post_id': 796, u'date': u'2016-10-28 08:23:00'}, {u'user_id': 4, u'title': u'Interesting!', u'comment_id': 9056, u'content': u'There are some interesting "social" features here. I mean, a GPS is a\xa0GPS, but I like the thinking around "guiding" the patient towards low anxiety when caregivers approach (they may not recognize them immediately in unfamiliar surroundings), etc.
\n\nDid you manage to do a small test yet?
', u'post_id': 777, u'date': u'2016-11-02 17:25:18'}, {u'user_id': 4, u'title': u'Is this a sort of benchmarking?', u'comment_id': 9019, u'content': u'Very interesting, @wave . But there is something I do not understand: it seems you are going through similar projects done in the past and making a list of them. What\'s next? Do you want to modify and improve them? To make some and have visually impaired people in your own city try them?
', u'post_id': 770, u'date': u'2016-11-02 17:12:15'}, {u'user_id': 3340, u'title': u'The South side of Madagascar ', u'comment_id': 27816, u'content': u'Thanks for your Idea @Nadia, water really Important for some people leaving on South of Madagascar. Where you \xa0need to walk around 30 to 70 km to access to the "nearest "source, It\'s about 3 times/year of raining. A place between desert and sea.
\n\nThe government haven\'t find solutions until now.\xa0
\n\nPeople mix ashes with cactus for eating on dry season,donations and sanitation are more rare than raining in a year. The color of the collectable water is like mustard. Kids with big belly is not fat but undernourished or full of worms called " tenia","ascanis".
\n\nIt\'s really needs to get top water, some people pay 1\u20ac for one gerican (20 liter) only on market day for it. Teaching sustainable technics is an issue, for me it\'s a key to overcome this situation.\xa0
\n\nWith this Climate Change Impacts, there was a flood on that place a couple years ago, but people didn\'t think to store water ; We were occupied to save lives and giving hands to the survivors. As @Matthias says nature is impredictable, when it\'s come you can\'t prepare for it.
\n\n', u'post_id': 746, u'date': u'2016-10-31 04:39:39'}, {u'user_id': 5, u'title': u'This is much better than desalination', u'comment_id': 26958, u'content': u'Before eventually tapping into desalination, it\'s best to do proper water management like in this example. Just let sun and rain do the desalination Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.
It\'s amazing how much ecosystems can be restored with just a few water management techniques: erosion control, soil buildup, aquifer replenishment. I was a fan of high-tech solutions like desalination just a few years ago, but became more and more convinced we better collaborate with nature where possible. A friend recommended me this documentary about ecosystem restoration on a massive scale (30,000 km\xb2 in China).
\n\nIt\'s not that humanity is out of solutions. The problem is, as always, about spreading knowledge and organizing collective action on a massive scale. That\'s why I like that @Michel focuses on the education part. Yet nobody has cracked the collective action problem yet (and not just because we\'re up against strong capitalist "collective destruction") \u2026
', u'post_id': 746, u'date': u'2016-10-26 10:25:42'}, {u'user_id': 8, u'title': u'The Bhungaroo water manaement system ', u'comment_id': 26045, u'content': u'Had forgotten I met Biplab a couple of years ago. He was telling me about an approach they had developed for Gujarat (India).
\n\nThe way it works is ver simple: they pierce the ground with thin funnels that "suck in" water from the surface and stores it in an underground reservoir (during the rainy season/floods). So you don\'t get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.
\n\nThe underground reservoir can hold up to 40 million litres of rainwater.
\n\n\n\n" Drought is a serious issue in the western Indian state of Gujarat, particularly for underprivileged female farmers whose livelihood depends on the monsoon. Limited rainfall in the state leads to water logging in peak cropping season. For the rest of the year, farmers experience severe water scarcity. But thanks to a life-changing technology, poor farmers are now converting crises into opportunities. Bhungroo is a water management system that injects and stores excess rainfall underground and lifts it out for use in dry spells. "
\n\nPerhaps the schools could be a good distribution centre, including the building of these reservoirs as part of the childrens science education. Not giving the solution but having them figure out how to do it, with local materials etc. And then teaching their parents and others in the society. @Michel what do you think, could this work?
', u'post_id': 746, u'date': u'2016-10-26 07:12:51'}, {u'user_id': 2551, u'title': u'Not aware of any silver bullet re desal. ', u'comment_id': 25788, u'content': u'Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches.
\n\nThe may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the "distilled" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern.
\n\nAnother issue is cost effective and clean transportation/distribution. There is a reason mankind mostly spread along rivers for a very long time.
', u'post_id': 746, u'date': u'2016-10-25 16:10:22'}, {u'user_id': 8, u'title': u'"Gaza man Fayez al-Hindi has created a small ', u'comment_id': 24896, u'content': u'"Gaza man Fayez al-Hindi has created a small rooftop mounted device that can produce about 2.6 gallons of clean water per day"
\n\nwww.youtube.com/watch?v=fJ1NCW5eDNs
\n\n', u'post_id': 746, u'date': u'2016-10-25 10:06:26'}, {u'user_id': 8, u'title': u'I came across a REALLY long article full of advice', u'comment_id': 23803, u'content': u'I read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I\'m asking around, but perhaps others. @trythis might know?
\n\nRecently I came across an article that points out a lot of practical advice for building livelihoods. But most of it is probably not applicable outside the US/Europe. That said here it is:
\n\nhttps://www.linkedin.com/pulse/70000-per-year-start-now-kevin-pezzi-md
', u'post_id': 746, u'date': u'2016-10-25 09:21:00'}, {u'user_id': 5, u'title': u"What to say? It's really difficult \u2026", u'comment_id': 21834, u'content': u'@Michel this looks like a very dire situation in Madagascar I\'m glad the business ideas list provided some inspiration, but you\'ll have to see how much impact DIY business ideas can have on poverty at first. I did not go ahead with any of these ideas in Nepal because @Dipti_Sherchan advised me that in her country, ideas involving new technology will have a hard time to be accepted in the villages. Something like a DIY backup system with used Li-Ion batteries is just over their heads, for example.
Instead, the EDGE Academy ("pocket university") concept that @Alberto mentioned came up (it is here by the way). It\'s about providing the education that will later enable citizens in Nepal\'s countryside to solve their other issues by themselves, including with new appropriate technology like the ideas from my list. I still really want to implement the pocket university in a large scale, but have not yet found a funding partner for the project so far. So for the start, there will be just a coffee growing course in combination with a project for international direct sales for Nepali coffee. (Edgeryders LbG provided some seedfunding for that project.)
\n\nPerhaps you know of agricultural and / or handicrafts products from Madagascar that are interesting for export to Europe (storable, high value per weight)? I can tell you what we have found out about direct sales of food items from Nepal to Europe. Customs etc. is very doable, and revenues for farmers will be about 200% of what they get in the traditional trading system (and even that is very high for coffee because Nepali coffee is traded as a specialty \u2026 so it can be a 400-500% improvement for some "more ordinary" coffees from around the world). Let me know if you want any more infos on that.
', u'post_id': 746, u'date': u'2016-10-24 02:12:05'}, {u'user_id': 3340, u'title': u'Probably a huge step for big changes for Malagasy people. ', u'comment_id': 20018, u'content': u'I know some friends who own small business like hardware store and probably interested about this @Noemi.\xa0
\n\nAs I mentioned in my article some of us still using woods and charcoal as a combustion. This inventory that @Matthias mentioned in Nepal looks great. It\'s can avoid a massive destruction of lives and nature.\xa0
\n\nActually there is no "wasted garbage" here in Madagascar, \xa0there is no specific garbage for glass,paper or plastic here, no recycling program.\xa0
\n\nNowaday almost 8 of 10 Malagasy people are living under extreme poverty if \xa0we refer to the UN statistics. In 4 years only, \xa0a new cohort of population ( more than 24 %) was falling in extreme poverty. They search inside garbage and rubbish try to find some used bottle and stuff which still sellable. Statistically. It\'s about 5.6 million of people,\xa0more than the people on the capital and some suburban areas. In general, about 18 millions of Malagasy have to get 4 000 Ar per day less than ~ 1, 25 $ /1\u20ac according to the International Pauverty Line.\xa0
\n\nWhat does such a sum for these very poor household ? Since a kilo of white rice grew 1 200 Ar /20 cent of euro \xa0a bag of charcoal is about 20 000 Ar /5 \u20ac, \xa0the scholarship of a child for the 1St grade is about 60 000 Ar / 15\u20ac \xa0even in public school this amount is including supplies and other overhead ...\xa0Still, nothing concrete is well engaged to alleviate a little bit sufferings of this high proportion of the population.
\n\nChange begin by everyone of us.\xa0
', u'post_id': 746, u'date': u'2016-10-31 20:08:42'}, {u'user_id': 3, u'title': u'The 58 ideas for businesses in Nepal might be worth looking into', u'comment_id': 17106, u'content': u'@Michel do you have friends involved in running their own small shops or local businesses? You might enjoy this inventory if only for being inspired - from dry toilets to recycled plastic materials, to low energetic household items.. great stuff. Also courtesy of\xa0@Matthias .
', u'post_id': 746, u'date': u'2016-10-22 07:02:00'}, {u'user_id': 4, u'title': u'Pocket University?', u'comment_id': 13915, u'content': u'Wow, @Michel , that seems to be a difficult problem. Infrastructure as basic as what you describe for Madagascar is out of my experience (I lived in Europe my whole life).\xa0
\n\nAll I can say is that the whole opencare thing is really not relying on government. The stories you read here are all stories of self-sufficiency somehow.\xa0
\n\nEducation, peer to peer, in a developing country: this sounds like a project @Matthias is developing in Nepal. He calls it "pocket university". Matt, do we have a link to the idea yet?
', u'post_id': 746, u'date': u'2016-09-19 21:00:25'}, {u'user_id': 3340, u'title': u'Ambiguity and initiative ', u'comment_id': 11993, u'content': u'Hi @Aravella, \xa0Alternative school is never been taken before. \xa0The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they\'re still unpaid since 7 mouths, about solidarity teachers is quite far if they don\'t get hired or paid again. \xa0Some parts of Madagascar doesn\'t get electricity yet, Internet access is limited and expensive sometime. \xa0Communal Library is rare, there are old books since 70\'s to 90\'s sometime \xa0no book but lot of dust and ruins.\xa0
', u'post_id': 746, u'date': u'2016-09-19 07:50:23'}, {u'user_id': 3402, u'title': u'Alternative schools', u'comment_id': 10044, u'content': u'Hi @Mishel! What about alternative schools?\xa0Solidarity teachers and maybe school from distance. Through radio or internet if it\'s possible. And not only typical lessons but also music, dance, poetry e.t.c. What about libraries in Magadascar?
', u'post_id': 746, u'date': u'2016-09-18 17:36:45'}, {u'user_id': 137, u'title': u'This article on Time explains how women access ', u'comment_id': 26054, u'content': u'This article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.\xa0
\n\n"Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies.
\n\nWhen asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.\xa0
\n\n\u201cWhat I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,\u201d says Aiken. \u201cI think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.\u201d
', u'post_id': 793, u'date': u'2016-10-25 08:02:39'}, {u'user_id': 4, u'title': u'On communities, unwanted pregnancies and laws of large numbers', u'comment_id': 24734, u'content': u'@Matthias and all, the Amish story points rather to the fact that communities\xa0do\xa0go for prevention, at least in some cases, and in a way that no health system does. @Lakomaa thinks this is because in modern care system, the entity receiving the care and the entity paying for it are always separate: sick person vs. taxpayer for state provision, insured-insurance company for private sector provision. So, it is always privately optimal to dump the cost of healing onto others, rather than assume the cost of prevention oneself.\xa0
\n\nSeen through this lens, community provision is fundamentally different, because the entity receiving the care is not an individual, but the (sub-Dunbar or equivalent) community,\xa0and that\'s the same as the payer.\xa0Hence the apparent lack of market failure in care provision among the Amish.\xa0
\n\nSo what\'s going on with prevention of unwanted pregnancies? Public health people I have talked to tend to shrug and say it\'s endemic. The window of opportunity for stupid and careless behaviour\xa0is a little too wide, the drive for instant gratification over prudence is literally a biological imperative, and even the best contraceptives only have a 99.99% effectiveness. If, say, in Italy you have about 20 million couples, if 10% of them are having sex tonight and all of them use contraception, you are going to get 200 unwanted pregnancies tonight,\xa0in just one European country. Best you can do is reduce the incidence of such incidents, but no human society ever achieved zero unwanted pregnancies.\xa0
', u'post_id': 793, u'date': u'2016-10-19 20:00:12'}, {u'user_id': 5, u'title': u'Can P2P create preventive solutions?', u'comment_id': 23368, u'content': u'While this story documents the power of underground networks to find pragmatic solutions, I am wondering if and why "P2P care" solutions do not equally pop up to create solutions through prevention (that is, preventing the pregnancies in the first place)? It could be that P2P solutions have a problem with collective motivation here, just as governments tend to rather react that act proactively, but more severe since P2P / underground solutions are so resource constrained. If so, that could point to a major issue with all P2P solutions into care (that is, making for a nice research focus).
\n\nI\'m pretty sure there is common ground to say prefentive solutions are preferrable (assuming that women who are undergoing abortion would have preferred not to, that is, not to have become pregnant in the first place). So, no need to refer to laws or morals. Even if the law allows it, there is still reason to prevent pregnancy.
\n\nSo even though contraception is widely available in Europe, on a society scale there are still this many unwanted pregnancies. What I\'m wondering here is about the reasons for this, and what P2P initiatives can do and are doing here? Of course this will have to do a lot with slow-changing "fuzzy targets" like culture, taboos, sexual practices and preferences. A crazy story from Nepal about how all this impairs the use of "normal" contraceptives among the young generation is this one (Natalia found it some time last year). But in Europe \u2026? What\'s going on here?
', u'post_id': 793, u'date': u'2016-10-19 16:24:00'}, {u'user_id': 4, u'title': u'Communities to the rescue! ', u'comment_id': 19626, u'content': u'These stories are quite ghastly. The silver lining is that communities tend to step into giving\xa0care, and to do so more when the care problem is "close to home". In the end, reproductive health and control over one\'s body are an absolute, so prohibitions don\'t work. People go underground, organize informal networks, and things happen anyway.\xa0
\n\nAnd this means that, maybe, a good way to do public policy on care is just to let people free to provide for each other, then step in to help with those which are obviously the most pressing concerns, such as this one. Concerns are revealed by the efforts put into addressing them, even when that means breaking laws and running the risks associated with it.\xa0
\n\nOf course, my remarks refer to a theoretical world without politics, where all decision makers are serene, evidence-oriented and well-meaning.
In fact, I think that the abortion underground functions so well purely because \xa0and thanks to the hypocrisy of the Polish society. Probably after decades of liberal regulations to some extent women are aware of the fact that abortions are needed, but catholic brainwashing has been so effective, that they're trapped between the moral and the pragmatic views on abortion. Now what seems to prove this is that women are not interested in lobbying for their right to abortion - they somehow agree to comply with the rules by having them underground and accepting the stigma, rather than fighting\xa0for their rights. Imagine even if the lowest estimate of 80.000 women having illegal abortions a year is right, and 10 percent of them would be up to fight with the system on that, we'd have a pretty great leverage to change the law by now. But we don't. have that. Well, at least until now - but this remains to be seen because we also have a conservative revival going on and if the church steps in, you never know who'd stay on top of things. I'd rather not expect us going any more liberal than we're at the moment.\xa0
\n\nAnother thing is that part of the available options just use the loopholes, they're not illegal. I guess you can't stop a woman from going abroad or having pills. And a lot of turning the blind eye on the doctors who i believe are well known for doing the abortions despite working underground.
\n\nAbout the movement now, I think there is a chance for some momentum - but I'm not too optimistic about it. We're observing a bit mobilization of civil society ever since the new government came into power, but that rarely brought any results. At the end, they use their democratic victory to pass any decision they seem fit - and giving up on a project of an outrageous reform just to keep rather shameful status quo is not a huge failure for them I believe. We might be building awareness and capacity for the future right now. Let's see.\xa0
", u'post_id': 793, u'date': u'2016-10-19 09:20:04'}, {u'user_id': 3, u'title': u'Who would have thought Poles have it that bad', u'comment_id': 10585, u'content': u'I didn\'t know the full extent of the situation when over the past weeks the world was following protests against anti abortion regulations.. \xa0I mean, having parents who lived through a communist pro natality decree and anti-abortion strict controls coupled with the shadyness of alternatives (one hears stories..) \xa0does give me an idea.. But present times, whoa. \xa0Thank you Natalia for sharing.\xa0
\n\nHow do the informal groups survive in this scene? Is there low enforcement and little policing which allows them to circumvent laws?\xa0
\n\nAlso, \xa0are you hopeful after the so called success of the protests?\xa0
\n\n
Hello @Michele_C , thanks for sharing this.\xa0
\n\nHowever, it looks like you copy-pasted some kind of promotional text, so that it can be hard for us to understand what\'s really going on behind the scenes. On the face of it, this can look\xa0like a holistic post-school care for rich kids. Can you tell us more as to which care needs you were trying address? Who are your, uh, clients I guess? Why did you feel this was needed?
', u'post_id': 539, u'date': u'2016-10-24 13:26:52'}, {u'user_id': 3, u'title': u'Are you looking for partnerships abroad?', u'comment_id': 21394, u'content': u'@Big_Bang_Schools welcome from me too!
\n\nI\'m\xa0a bit late to the party, but I\'m curious if you also work with secondary and high schoolers? My mum teaches at a pretty mainstream school in Romania and was just telling me the other day that they would love to partner up with schools abroad for creative exchanges betweel pupils. Is that something you would consider? Also, if you\'re involved in international educational projects and could use a partner in this area, let me know!\xa0
', u'post_id': 761, u'date': u'2016-10-17 13:34:51'}, {u'user_id': 3446, u'title': u'Undisclosed content ', u'comment_id': 16092, u'content': u'Undisclosed content', u'post_id': 761, u'date': u'2016-09-29 07:13:21'}, {u'user_id': 4, u'title': u'What is the most important difference', u'comment_id': 8081, u'content': u'Welcome, @Big_Bang_Schools . This sounds really promising. I tried to look up your links to find out more about your initiative.\xa0Unfortunately I can\'t read Greek, so I don\'t know more now than I did before.\xa0
\n\nIf you were to point out the main difference between Bog Bang Schools and ordinary schools, what would it be?\xa0
', u'post_id': 761, u'date': u'2016-09-23 11:20:00'}, {u'user_id': 3, u'title': u'Anything we can support you with?', u'comment_id': 10131, u'content': u'Nice to meet you @rem_it, I\'m guessing you\'re part of the Milano crowd?
\n\nWhat rural areas do you have in mind for deploying this technology?
', u'post_id': 781, u'date': u'2016-10-17 12:50:13'}, {u'user_id': 2551, u'title': u'*some context I found interesting on self-diagnosis', u'comment_id': 21290, u'content': u'Of course part of why I found it interesting is because it is an unrepresentative outlier. But still, outliers show potential.
\n\nhttp://www.thisamericanlife.org/radio-archives/episode/577/something-only-i-can-see?act=1#play
\n\nIf you contrast that with the wikipedia entry on self diagnosis, which say things like:
\n\n"One of the greatest dangers of self diagnosis in psychological syndromes, is that you may miss a medical disease that masquerades as a psychiatric syndrome. Self-diagnosis also undermines the role of the doctor-which is not the best way to start the relationship. Then there is the fact that we can know and see ourselves, but sometimes, we need a mirror to see ourselves more clearly. By self-diagnosing, you may be missing something that you cannot see. Another danger of self diagnosis is that you may think that there is more wrong with you than there actually is. Self-diagnosis is also a problem when you are in a state of denial about your symptoms."
\n\nI have to say it seems like there is something rotten in the state of Denmark. How much research money gets spent on improving methods of self diagnonsis exactly?
\n\nNot much it seems:
\n\nPubs since 2015 https://scholar.google.no/scholar?as_ylo=2015&q=self+diagnosis+health+care&hl=en&as_sdt=0,5
\n\nPubs overall https://scholar.google.no/scholar?q=self+diagnosis+health+care&btnG=&hl=en&as_sdt=0%2C5
', u'post_id': 734, u'date': u'2016-10-16 10:21:14'}, {u'user_id': 2551, u'title': u'Add on kit ideas', u'comment_id': 16393, u'content': u'I\'ve worked on/brooded over some things that may be helpful in connection to this.
\n\nNext step up would be a recording function, a sampling kit, and a photo kit. Next step from that would be a full smartphone with some diagnostic hardware. The smartphone would be important to catch many of the cognitive bias pitfalls associated with self-diagnosis*. But both these could be intermittently provided via a long range drone delivery:
\n\nhttps://cocreate.localmotors.com/nowbreakit/air-nurse/
\n\nand here
\n\nhttps://cocreate.localmotors.com/nowbreakit/rminsul/
\n\n@jahn perhaps also interesting for you.
', u'post_id': 734, u'date': u'2016-10-16 09:50:57'}, {u'user_id': 3421, u'title': u'Undisclosed content ', u'comment_id': 10424, u'content': u'Undisclosed content', u'post_id': 734, u'date': u'2016-09-19 16:54:38'}, {u'user_id': 2551, u'title': u'Interesting stuff', u'comment_id': 9902, u'content': u'I & a friend have put some thought into care & self driving cars here (creative commons): https://cocreate.localmotors.com/RaMansell/healthy-movement/
\n\nI also have a couple of ideas regarding hygiene (shower mods), and had worked on a prototype of for electrical stimulation of muscle cells grown in a dish.
\n\nI\'d love to discuss those things with someone who has a little more care background than I do (materials science).
', u'post_id': 773, u'date': u'2016-10-16 09:21:42'}, {u'user_id': 3, u'title': u'+1 focus on one area at a time', u'comment_id': 25125, u'content': u'Good words, Alex. Same for me.
\n\nThe trap is what to me is\xa0a deadly combination: a lot of flexibility and many roles to choose from, on one hand,\xa0and being a generalist\xa0.on the other hand. These two can sometimes get you to drift off and not focus on one area at a time -> hence some extra\xa0messiness in a flat organisation, as prompted by @Yannick.
', u'post_id': 785, u'date': u'2016-10-15 13:05:57'}, {u'user_id': 2569, u'title': u'Working across strands, separately', u'comment_id': 24272, u'content': u"At different points in my life i have found myself settling into each strand.
\n\nI think that i'm lucky that i have a mixture of practical\xa0and esoteric skills that allow me to find a happy place doing a variety of tasks. I often find that the more 'mindless' a physical task is the more it opens my mind up to thinking about the bigger picture.
\n\nThat said, i have found that i only really excel when i'm allowed to focus on one area at a time. If i need to be a doer, then i can't also be a prepper. The same with preparing and leading;\xa0Leading and thinking.
\n\nI do also think that 'thinking' and 'leading' are mutually exclusive properties. I believe that leaders emerge naturally from each section or strata. You see this kind of strategic leadership built into highly heirarchical organisations like the armed forces. You have 'doer' leaders and 'prepper' leaders and 'thinker' leaders.\xa0
", u'post_id': 785, u'date': u'2016-10-14 19:07:43'}, {u'user_id': 4, u'title': u'Adjusting roles over time and situation', u'comment_id': 20914, u'content': u'@Yannick , you have a point here. I would like to add my own experience.\xa0
\n\nHere it is: there is a positive correlation between being good at different things, like thinking, prepping and executing in your scheme. Smart, hard working people tend to be better on all three (or n-) dimensions with respect to others. So, I very much share @Noemi \'s point of view: when we meet an interesting person, we try to imagine a role for her, then try to create the conditions for us to be able to offer her that role. But, at the same time, the role is embedded in the\xa0project,\xa0not in the organisation. People can try their hand at roles, then maybe move on to different ones in the next project.\xa0
\n\nThis allows for some limited pairwise adjusting, too. I prefer pure research to\xa0middle management roles, and I prefer middlie management to leadership. Still,\xa0in many of my former projects\xa0I had to lead, because no one else would do it (or could do it). I led reasonably well, with some mistakes, and I would do it again if I cared enought about the project. But when I find a better leader, I gladly step down to become, I guess you would say, a doer.\xa0
', u'post_id': 785, u'date': u'2016-10-14 14:38:16'}, {u'user_id': 3, u'title': u'Makes sense to me too. My two cents', u'comment_id': 15147, u'content': u'I remember talking with Celine in Bxl\xa0about the perks and not of a flat group organising. The hardest part I\'m experiencing is with growing\xa0- if you have a small team starting up people are more than willing to do everything and teach themselves what they don\'t usually do in order to make it work. When numbers are in,\xa0it\xa0takes a conscious effort just to establish processes, or make norms more explicit\xa0i.e. double check understanding of the task at hand; make sure there is at least someone committed to the task; reinforcing that it\'s OK to ask for help; to fail etc.
\n\nWhat I found that works is treating everything as a project in and of itself and assigning roles within the project. A making of sales, an event, a funded project, anything.\xa0In another one, roles can change, but as long as you have someone acting as a PM with that skillset (probably a prepper?)\xa0that takes on the\xa0responsibility to think about\xa0roles\xa0and enable them in the project team.
\n\nA\xa0final point: a flat organisation has leaders of its own, even informal\xa0- I can\'t imagine not having leaders, even multiple ones,\xa0giving direction to the org.\xa0Don\'t you have them in your large group Yannick?\xa0Falkwinge,\xa0who wrote about making great ideas happen with many people contributing, was saying that managing\xa0day to day operations require\xa0"one portion classic\xa0project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm\u2019s goals, culture, and values as it grows." OK, his Pirate Party\xa0was\xa0a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills\xa0distrbuted within the leadership may help the general organisation and support others to fall into specific roles..
', u'post_id': 785, u'date': u'2016-10-11 06:24:54'}, {u'user_id': 3362, u'title': u'Makes sense', u'comment_id': 8124, u'content': u"What you write makes sense. People already think in this way to some extent, there are some good examples in our team of 'doers' that are very aware that they don't like to do the 'thinking' etc. I often hear people talk about themselves in these (general)\xa0categories and assume this awareness\xa0is already more widespread.
\n\nYet teams often still fail. Where lies the problem? Are we not taking the insight far enough?
", u'post_id': 785, u'date': u'2016-10-10 18:09:44'}, {u'user_id': 3, u'title': u'Anyone from the project around here?', u'comment_id': 9353, u'content': u"I'm curious what is an actionable proposal from the group and how it is being received..?\xa0Going straight into policy making seems like a titanic work, i'd be interested in how food waste is being approached at the policy level, if at all?\xa0This seems like a topic many people care about and which is already seeing promising small scale solutions, particularly in Germany.. with Foodsharing.de, Yunity, community gardens, pop up\xa0fridges and many others.\xa0
", u'post_id': 775, u'date': u'2016-10-15 12:28:04'}, {u'user_id': 2569, u'title': u'Arts organistations', u'comment_id': 21005, u'content': u'It\'s definitely worth reaching out to arts organisations to see how they respond to these types of ideas as well. I don\'t know about the mainland european models, but with the drastic reduction in state subsidy and the lack of increase in American style donor funding, UK based performing arts organisations have become much more interested in the ways they can repurpose buildings for theatre, creative industries and wider arts based practices.
\n\nAn interesting case study would be Theatre Delicatessen in London:
\n\n\n\n\nThey seem to only ever work in spaces that most others would move out of. Since they started they have had London bases in a disused factory in the West End (now a boutique hotel, i believe) then they moved into the recently abandoned Guardian newspaper head office, now they\'re moving across the river to an old Victorian library building.
\n\nThey\'re less interested in what the space was before than what it can be in the future.
', u'post_id': 791, u'date': u'2016-10-14 19:18:56'}, {u'user_id': 4, u'title': u'Practical learning', u'comment_id': 15857, u'content': u'I really enjoyed Loic\'s presentation. It was very practical: disable lifts so you can use the stairway to have social control while leaving the space open, out services at ground level, reuse office space as highly flexible living quarters...
\n\nI think this could be a general purpose tool. A sufficiently large, flexible and central building can act like a coral reef from many life forms to use it and transform it. In 123 Rue Royale we see a community kitchen and\xa0a library, for example.\xa0
\n\n@Yannick , is there a way that Loic himself could join this discussion? Would he be up for answering our comments?\xa0
', u'post_id': 791, u'date': u'2016-10-14 14:50:00'}, {u'user_id': 3, u'title': u'When squatting is the opposite of ghettoization', u'comment_id': 9086, u'content': u"I found the part about living in diversity most interesting - and I imagine some of the founders in 123 are real community governance experts having made it possible for people to pay differentially according to their financial status.\xa0
\n\nI don't understand how this case is not more referenced or visible online.. I only found a couple of youtube TV coverage videos.\xa0
", u'post_id': 791, u'date': u'2016-10-14 14:04:13'}, {u'user_id': 3, u'title': u'How do you know you are succeeding?', u'comment_id': 8150, u'content': u'Hello @Positive-Voice, and welcome! I somehow managed to miss this post. You seem quite mature\xa0for a non profit and mobilizing volunteers consistently. I was always curious, is there a way to see if you\'re effective in prevention\xa0and raising awareness outside the campaign outputs - for example how many people you\'ve talked to, how many flyers were spread etc?\xa0
\n\nAre you seeing your most vulnerable populations\xa0in Thessaloniki more empowered over the years or is your job getting more and more difficult (for reasons that maybe don\'t have anything to do with your organisation\'s work)? \xa0
', u'post_id': 537, u'date': u'2016-10-11 05:21:53'}, {u'user_id': 4, u'title': u'I salute you! ', u'comment_id': 8138, u'content': u'What a great bunch of people! One of the perks of working with Edgeryders is that we come within line of sight of all these super-interesting individuals. I have already interacted with most of them, and\xa0cannot wait to read more from all. Ad maiora.\xa0
', u'post_id': 5947, u'date': u'2016-10-10 22:43:06'}, {u'user_id': 3459, u'title': u'Undisclosed content ', u'comment_id': 15032, u'content': u'Undisclosed content', u'post_id': 787, u'date': u'2016-10-10 13:19:17'}, {u'user_id': 3, u'title': u"Isn't it easier to join an existing project?", u'comment_id': 7486, u'content': u'Hi @R\xe9seauxSolidaires, it was great to meet both of you in Brussels. Sorry for writing in English, it comes easier to me.. \xa0I am wondering whether it isn\'t easier to join forces with another group\xa0in town working already on this? If it doesn\'t do the very human approach you are arguing for, perhaps making a project with them is a first step. Remember our last session at HUIS VDH where this was an advice we shared with each other?
\n\nBonne chance!
', u'post_id': 787, u'date': u'2016-10-07 13:42:25'}, {u'user_id': 4, u'title': u'Poland!', u'comment_id': 11177, u'content': u'I thought about you because of the recent protests in Poland. The idea I\'m getting is this: tracking "shadow", informal, semi-legal initiatives on care means mapping both need and capacity. It carries information on what people think is important, and on the amazing self-organising ability of communities.\xa0
\n\nWhat we need is a true voice. I got the info from an article. It is a good article, there\'s a good story but no one behind it we can go back to for more. I was hoping you\'d be able to track someone who is personally involved in this service (or others, connected to reproductive health and well-being) who would jump in and comment, or share some more experience. Poland, I would say, is a good place to start.\xa0
', u'post_id': 786, u'date': u'2016-10-10 08:06:27'}, {u'user_id': 137, u'title': u'@Alberto, with pleasure - do you want me ', u'comment_id': 7928, u'content': u'@Alberto, with pleasure - do you want me to look specifically at the abortion by-paths?\xa0
', u'post_id': 786, u'date': u'2016-10-10 06:36:46'}, {u'user_id': 3331, u'title': u'Milan cycling event', u'comment_id': 31150, u'content': u'Kickoff event
\n\n\n\n\n
Dear all
\n\nI spoke about this project also with other collegues\xa0that work\xa0in Fondazione Don Gnocchi (english presentation). Maybe someone can contribute to this project.
', u'post_id': 720, u'date': u'2016-09-06 07:31:28'}, {u'user_id': 3331, u'title': u'Status, Next steps & join the party', u'comment_id': 29960, u'content': u'We (+Costantino, +Alexander Shumsky) are working very hard on parallel activities.
\n\nA. We are about to establish\xa0the first prototype session (prototyping the flow of encounters in WeHandU).\xa0A1. We are\xa0contacting\xa0candidate participants (people with tetraplegia/multiple sclerosis or stroke).
\n\nB. Grant applications (we already got swedish, local and\xa0other funding + materials) - preparing 100k request
C.\xa0Finishing instructables for solution for\xa0the hand.\xa0
\n\nD Launching the \xa0WeHandU.IT site
\n\nAny participation would be great fun (as in functional)\xa0for all. Especially on public relations (A1) management (B) and networking (D)
', u'post_id': 720, u'date': u'2016-09-02 08:57:17'}, {u'user_id': 3331, u'title': u'tried to involve the LEDHA', u'comment_id': 29545, u'content': u'Tanks +Francesco Maria ZAVA. What happened when you \'\xa0had tried to involve the LEDHA\'?\xa0I had a look on the site. \xa0I\'t really would be a great help I you, or someone (+Costantino, +Alexander Shumsky) could inquire.
', u'post_id': 720, u'date': u'2016-09-02 08:01:44'}, {u'user_id': 3185, u'title': u'No exactly clinical expertise, but very interesting link!', u'comment_id': 29072, u'content': u'Hi
\n\nSome time ago, just before the OpenCare Project\'s start, I had tried to involve the LEDHA (http://www.ledha.it/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of "WeHandU". I believe that the proposal to Rune can actively engage these people.
\n\nOf course I agree on the role of WeMake as a reference point and work space! : D
', u'post_id': 720, u'date': u'2016-09-01 10:45:27'}, {u'user_id': 3, u'title': u'Who do we know in Milano in medical care/ practice?', u'comment_id': 28732, u'content': u'I am hoping one of you can help connect Rune and his team to practitioners and patients interested to volunteer to explore how\xa0assistive technology can move forward and into use?\xa0@Rossana_Torri, @Franca, @Francesco_Maria_ZAVA, @Alberto_Simonetti ?
', u'post_id': 720, u'date': u'2016-09-01 10:08:58'}, {u'user_id': 3331, u'title': u'Precision', u'comment_id': 28462, u'content': u'Thanks @Natalia, re \'volunteer their time to work on their research\' \xa0I\'d like to point out that we do not consider it research, rather a quest. The research has been done, it\'s about applying the results and create value for the comunity.
', u'post_id': 720, u'date': u'2016-08-30 20:42:38'}, {u'user_id': 137, u'title': u'@Noemi, @Alberto - I\xa0had a short conversation with ', u'comment_id': 27806, u'content': u'@Noemi, @Alberto - I\xa0had a short conversation with @Rune and @Alexander Shumsky\xa0yesterday. Besides discussing OPENandchange, I was also asked to try and help to find physiotherapists and patients who\'d like to volunteer their time to work on their research. Do you know of anyone in the community who could be of help here? Or a good way to connect? They really want to have people from Milano and around, in order to be able to work hands on and regularly with them.\xa0
\n\nLet me know if you have a good idea;)
', u'post_id': 720, u'date': u'2016-08-30 15:33:19'}, {u'user_id': 3331, u'title': u'Right on', u'comment_id': 26952, u'content': u'Thanks, @Alberto. You coined it perfectly \'\xa0This is about patients\xa0being\xa0researchers, and viceversa\'. Actually we try to avoid terms like patients (https://en.wiktionary.org/wiki/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.
', u'post_id': 720, u'date': u'2016-08-30 20:50:21'}, {u'user_id': 4, u'title': u'This!', u'comment_id': 26032, u'content': u'Welcome @Alexander_Shumsky . This is\xa0exactly\xa0the core idea of opencare: communities endowed with both care problems\xa0and\xa0care solutions, equipped with collective smarts and open knowledge.\xa0
\n\nNote that this is not the same thing as "patients working with researchers". Pharma has this already. But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients\xa0being\xa0researchers, and viceversa.\xa0
', u'post_id': 720, u'date': u'2016-08-27 09:34:11'}, {u'user_id': 3331, u'title': u'Philosophical background', u'comment_id': 23359, u'content': u'https://edgeryders.eu/en/doctor-could-you-hack-me-a-neuroprosthesis-please
', u'post_id': 720, u'date': u'2016-08-23 11:37:51'}, {u'user_id': 3331, u'title': u'Background', u'comment_id': 21631, u'content': u'@Noemi, you have a good one in "what it would be like for patients to work side by side with researchers". That was how it used to be, and that was the most productive time in scientific history. Now, if you, say, make a survey of what colour of wheelchar is preferred, you need permissions from ethic comittee, legal paperwork etc, = >2k\u20ac and\xa0>2-3 months delay
\n\nThis initiative is not intended as research, not intended as competing with hospital regulations. It\'s aim is to join experts (=people dedicating time to making mistakes) with newbees (people spending time adapting/improving to new/chronic physical conditions.
', u'post_id': 720, u'date': u'2016-08-23 10:45:21'}, {u'user_id': 3331, u'title': u'Straighter', u'comment_id': 16892, u'content': u'Yes @Noemi, I have the great pleasure that\xa0@Alexander Shumsky\xa0is working with me at the hospital. We have proposed @Costantino to join with WeMake on this one. Anyone are strongly encouraged to contact us, we really need some clinical people or just some epathic persons. Often what people really need is just to talk.
', u'post_id': 720, u'date': u'2016-08-23 10:32:00'}, {u'user_id': 3, u'title': u'Understood!', u'comment_id': 12192, u'content': u'Having seen Constantino resurfacing I get the connection now and have a much better sense of what you are up to, clearly on the side of OpenCare prototyping and testing the idea in practice.
', u'post_id': 720, u'date': u'2016-08-24 17:47:05'}, {u'user_id': 3331, u'title': u'How and where', u'comment_id': 12142, u'content': u'Thanks @Noemi for asking "a\xa0series of activities to happen in one or more existing spaces? And where?"
\n\nWhat:
\n\nWe have the technical knowledge \xa0(of FES-Functional Electrical Stimulation) to\xa0
\n\n1 Create a\xa0wearable device that improves the hand function
\n\n2 Hack (or just buy)\xa0a device for drop foot (@tamarafuma\xa0about that)
\n\nthen we know about a number of other solutions for other physical functions. When you work with people you find solutions. \xa0
\n\nWhere:\xa0We need to start locally of logistic issues. Telematics are good but physical contact is better. As said, WeMake is close so if they agree, this is where we start. We need a hub to share ideas, thats where I hope OpenCare & Edgeryders come in.\xa0
\n\nWho:\xa0We will be dedicating our spare time to this. For some it overlaps our profession. We need to cover many diciplines (also just as contact persons). We will work to include. Participants will become experts (mentors and facilitators)
\n\nFuture:\xa0It MUST spread as makerspaces have spread. Hopefully with shared MISSION and VALUES, concepts of WHAT may differ as local resources differ.\xa0
\n\nWhy: Because it will fill a need that the healthsector is not meeting. Personalized, responsible selfcare and building a DIRECT bridge between healthcare professionals/researchers and users.\xa0
', u'post_id': 720, u'date': u'2016-08-23 11:13:17'}, {u'user_id': 3, u'title': u'Let me get this straight', u'comment_id': 10548, u'content': u'@Alexander_Shumsky\xa0welcome to Edgeryders, and thanks to Rune for inviting you!
\n\nI read this and also the full project description, and I see it ties nicely to Rune\'s question from before:\xa0what it would be like for patients to work side by side with researchers and makers. But to be sure: are you working on a makerspace or on a series of activities to happen in one or more existing spaces? And where?
', u'post_id': 720, u'date': u'2016-08-23 07:39:05'}, {u'user_id': 3, u'title': u'Welcome.', u'comment_id': 7325, u'content': u'Hi @ParamountCaliforniaUniversity how come you joined Edgeryders? Ours is more a community of people, so if you would consider changing your username into a more personal one that would be super, it helps people connect to you/\xa0
', u'post_id': 782, u'date': u'2016-10-07 10:23:34'}, {u'user_id': 3362, u'title': u'Thank you ', u'comment_id': 9085, u'content': u'Thanks to everyone who made it happen and took all the notes to write this report.\xa0It was an inspirational day and it\'s nice to read everything again!
\n\nI can\'t see the Frameadate link in the text @Yannick. I\'d love to be there to meet up again.
', u'post_id': 541, u'date': u'2016-09-28 10:00:18'}, {u'user_id': 8, u'title': u'Cecile took photos of with the dates on them I think?', u'comment_id': 11599, u'content': u'Hey @WinniePoncelet was really nice meetin you, makes me happy to hear you liked the workshop
So about the dates. People put up their possible dates on post its\xa0on the imaes and stories we printed and hung uo. I\'m in Washinton DC at the moment and cannot access them. But I think Cecile took photos of them. If someone can go through them and aggregate the dates then we can send out a doodle with suggestions for people pick from.\xa0@Yannick has them I think...
', u'post_id': 541, u'date': u'2016-09-28 10:43:39'}, {u'user_id': 3, u'title': u'Dates for a future meetup', u'comment_id': 12240, u'content': u'I\xa0have to fly back to Bxl in a month time and so would be great to reconnect! If anyone is following up with participants, do include me please
"First you squad, then you talk" \xa0- Loic\'s presentation was great, too bad we don\'t have the full story here to be able to connect more people to it.
\n\n@Yannick is the story by any chance in the making?
', u'post_id': 541, u'date': u'2016-10-05 14:30:06'}, {u'user_id': 3293, u'title': u'Yes there is a story in the making about it', u'comment_id': 17162, u'content': u'Will be published today or tomorrow
', u'post_id': 541, u'date': u'2016-10-07 10:06:21'}, {u'user_id': 3396, u'title': u'Inspiring', u'comment_id': 31536, u'content': u'This is really nice to hear. Was just talking with 2 of my Syrian friends and they said it\'s very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.
\n\nI am working on this project\xa0\xa0and would like to see how we could collaborate. Maybe you could introduce them to online platfrom for connecting to other newcomers that are here a bit longer and are starting with their self employment or small business and need volunteers or potencial partners... or they can maybe see what are local businesses searching here, to get a better feeling of what is smart to focus on for the future and what skills will they need to learn in order to build a nice future for themselves.
\n\nPlease, if you have time, check a bit what we do and I would be happy if we find some common points for collaboration
The Eur Cultural Foundation has a yearly programme for grassroots initiatives and a call for next year closing on Sep 20. The topic is "Moving Communities". @Tomma I thought you guys might be interested:
\n\nhttp://www.culturalfoundation.eu/idea-camp-2017
', u'post_id': 703, u'date': u'2016-09-13 08:48:37'}, {u'user_id': 2551, u'title': u'MA, Studienfach Migration und Diversit\xe4t in CAU', u'comment_id': 30610, u'content': u'If you are interested, there is now University program called "Migration and Diversity" in this University: https://www.studium.uni-kiel.de/de/studienangebot/studienfaecher/migration-und-diversitaet-ma
\n\nI found that out when discussing things with the people who help out at a refugee center close to there. There ought to be some mutual interest in some of the activities... apparently it is a new thing - so there is probably a lot of learning for everyone involved.
', u'post_id': 703, u'date': u'2016-08-29 15:08:59'}, {u'user_id': 3396, u'title': u'Now I am also here', u'comment_id': 30503, u'content': u'Hello,
\n\nI also joined the discussion. Will try to describe how we started and what we are doing a bit more in details and will send it to you as soon as possible. Like the community here. Will check and read about the projects and share them with the world
Nice to meet you @serapath, and what a good match with Franca.\xa0
\n\nShe was saying elsewhere, in her own words, that language is key to connect newcomers to the new setting, but also arguing for activities like the ones you propose. Do you manage to break throguh the language barrier, or have people helping with\xa0that? Either way, well done, it seems there\'s a lot you have going on and quite some activity (checked your live chat, great one\xa0hehe).
', u'post_id': 703, u'date': u'2016-08-31 08:25:49'}, {u'user_id': 3371, u'title': u'Undisclosed content ', u'comment_id': 30316, u'content': u'Undisclosed content', u'post_id': 703, u'date': u'2016-08-30 15:34:34'}, {u'user_id': 3324, u'title': u'Interesting!', u'comment_id': 29957, u'content': u'hello @serapath!
\n\nThanks for sharing!
\n\nwhat you\'re doing it\'s really interesting! I would like to know something more... how many refugees are already involved? Which are the main results? Refugees need to have particular skills to start?\xa0
', u'post_id': 703, u'date': u'2016-08-29 14:08:13'}, {u'user_id': 2551, u'title': u'Learn to write the wikipedia?', u'comment_id': 29882, u'content': u'I\'ve made a draft outline for a German centered effort to do this with the help of the refugees:
\n\n
(download and rename to .pdf - I could not upload easily otherwise)
\n\nHmm... didn\'t work
PM me if you are interested.
', u'post_id': 703, u'date': u'2016-08-29 14:59:28'}, {u'user_id': 2551, u'title': u'Nice, also if you want to do engineering...', u'comment_id': 29543, u'content': u'Get some fairly decent CAD skills without the cost. And share some of what you make with the rest of us. Onshape.com allows CAD straight from the browser (of a decent computer or notebook). Check out who is behind it, those are some of the CAD Urgestein folks, and everything is fully legit.
\n\nYes, it is a free/commercial program, but currently the deal is extremely fair.
\n\n\n\nHere is the nuts % bolts video, it is not exactly easy to learn from 0 with 0 help though:
\n\n', u'post_id': 703, u'date': u'2016-08-29 14:27:19'}, {u'user_id': 3371, u'title': u'Undisclosed content ', u'comment_id': 29067, u'content': u'Undisclosed content', u'post_id': 703, u'date': u'2016-08-14 16:38:05'}, {u'user_id': 3, u'title': u'Very promising start! ', u'comment_id': 28459, u'content': u'A #win already.. \xa0Congrats for the future work!\xa0
\n\nWill try to give your start next campaign an even bigger push over the next weeks, \xa0well done!\xa0
', u'post_id': 703, u'date': u'2016-08-14 12:29:04'}, {u'user_id': 3242, u'title': u'Thanks for the feedback!', u'comment_id': 27799, u'content': u'Hey everyone! We\xb4re really happy about the\xa0feedback! thanks a lot
From September i\xb4ll be working at the ROC21 Project (http://roc21.openstate.cc). As I\xa0already gained\xa0a little bit experience at the SAVA project, they asked me to be part of the Team. I\xb4m looking forward to that, because now we can think in bigger scales. We will try to build up a community inside the camp, where everyone is an active part. Thinks like an Urban Garden on top of the building or\xa0an actual woodworkshop are under discussion. But there are a lot of issues to face, for example how to motivate people @Natalia_Skoczylas it could go in that direction. Would be great to find some kind of reward for peoples work, even if it\xb4s not money. I\xb4ll keep you guys updated!
\n\nBesides that we still want to realise our modular furniture system at the ICC Berlin. The Malteser are very interested too and already said that 30 of them will be there and help with the workshop!\xa0We might get a sponsorship, but it would still be great if we could raise the money via our startnext Campaign. We\xb4re still happy about support :)! https://www.startnext.com/sava\xa0
\n\nAlso the ROC21 Project will benefit from the experience we\xb4ll make at the Workshop.\xa0
', u'post_id': 703, u'date': u'2016-08-14 11:43:34'}, {u'user_id': 8, u'title': u'Well done, very proud of you', u'comment_id': 26024, u'content': u'@Tomma, @dennis, @simon.messmer and Liza. We are now starting to push this out and having discussions with a number of foundations, Charities\xa0 etc ahead of the #OPENandChange fundraising tour which includes a workshop in Berlin.
\n\nIt\'s starting to get interesting
Hey @Tomma - I\'m really glad to see such a constructive idea being realized in Berlin. It\'s absolutely essential for a myriad of reasons. I was also wondering lately if you thought of taking similar activity one step further and creating sort of economy inside the temporary shelters/housing - so that the produce of the inhabitants could be sold outside, either as affordable fixes for the houses, or maybe as crafts, if higher quality materials were provided?\xa0
', u'post_id': 703, u'date': u'2016-07-15 06:27:37'}, {u'user_id': 2551, u'title': u'Repair Caf\xe9?', u'comment_id': 23333, u'content': u'You could host a RC and perhaps keep some of the pieces for parts and training. Of course you can also encourage people to donate some semi-working things or decent enough tools (no one should work with shit tools!)
', u'post_id': 703, u'date': u'2016-08-29 15:03:37'}, {u'user_id': 2551, u'title': u'Some technical ideas', u'comment_id': 23108, u'content': u'If you want to personalize with few resources - try making your own paint. I recommend you use non-toxic pigment (and still use masks - just to spread awareness), and there are a bunch of non-toxic to fairly harmless liquids to mix stuff into (e.g linseed oil*). You can get a lot done with mortar and pestle for personalization scale.
\n\nOther things that help are fabrics with nice haptic properties (you can sew together patch-work style). Needle skills are nice to have anyway if you want/have to live low budget. Just make sure you get good thread. Fabric will also improve overall acoustics.
\n\nPull broken head-phones out of the trash and fix them (9/10 are broken at the jack, you can fix them with almost nothing, if you are good you can re-use the solder that is already on them. Then you only need a lighter/candle and e.g. some liquid adhesive and string to fix things permanently. A quiet atmosphere and my (home) sounds around me help my mood a lot.
\n\nLEDs are another option for color personalization instead of paint. If you DIY, just make sure you understand what resistor you need. You will need one unless you do plug in LED-bands which are relatively expensive (but still not bad, you could also cannibalize them). If treated right LEDs will last forever though.
\n\n*Not sure how well that works on particle board though. Epoxy is the solution that will always work (and can also be used to fix a lot of other stuff) but is potentially somewhat toxic, moderately expensive (if you buy a big just past shelf life bucket), and needs some know-how and tools to avoid a utter uncleanable mess. Hit me if you want more details.
', u'post_id': 703, u'date': u'2016-08-29 14:50:03'}, {u'user_id': 3, u'title': u'Making personalized design', u'comment_id': 21728, u'content': u'@Tomma first off: congrats for completing the course work, @Nadia was nice to give me a small update and I\'m happy for you guys and hope you\'ll continue on this road of very thoughtful design!
\n\nFor ever new, exciting and personalized design, did you try talking to commercial furniture designers or the like.. a company that could help take this even forward somehow? Or maybe the team at\xa0ROC21 can help?\xa0
\n\n\n\nThis is a handmade table produced by the roma community living on the outskirts of my hometown, in a rubish dump <sigh>. The table was purchased by a hip bar downtown (I\xa0think that at an auction..)\xa0and is currently under great use. Photo from Made in Pata Rat facebook page. I will see if I can get in touch with someone who can better report on this story.
', u'post_id': 703, u'date': u'2016-08-07 15:17:08'}, {u'user_id': 3242, u'title': u'thanks for the feedback!', u'comment_id': 21499, u'content': u'\n\nThese are exactly the questions we are dealing with right now. We started off with honeycomb cardboard as you see on the pictures because its very easy to work with even if you dont have proffessional tools. The Problem though: it\xb4s not long lasting. The stuff we build with the the refugees about a month ago is already loosing its shape.
\n\nThats why we\xb4re currently working on prototyse out of chipwood tied together with cable ties. two cheap materials that you can get everywhere. The only tool needed is a drilling machine. One Set of wood panels can be assembled in three different ways according to the needs. The cable ties can be opened if the people want to build something else.
\n\nHow can we make it personal though? Are people still motivated if every Box looks the same in the end?
\n\n\n\nThe Camp we are working in, is quite open. As long as its not dangerous in any ways people can bring whatever they want.\xa0
\n\nThat seems to be another Problem: every camp has different rules, so its almost impossible to find a general context.\xa0
', u'post_id': 703, u'date': u'2016-07-05 14:51:34'}, {u'user_id': 4, u'title': u'Young men and construction materials', u'comment_id': 16195, u'content': u'Thanks for sharing, @Tomma , and welcome to Edgeryders. This was really inspiring!
\n\nExactly the same point about young men not being catered to was made by @Alex_Levene in the context of The Jungle. We have been fantasizing about "emergent" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.\xa0
\n\nHowever, authorities\xa0really\xa0dislike (one could almost say fear)\xa0such an outcome. Interesting stuff was built and deployed in The Jungle (even a theatre!), but then the people in charge started searching incoming vehicles for construction material. It was completely disallowed to bring anything to make anything into\xa0the camp.\xa0
\n\nHow is the situation in Berlin?
', u'post_id': 703, u'date': u'2016-07-03 18:24:08'}, {u'user_id': 32, u'title': u'Undisclosed content ', u'comment_id': 9599, u'content': u'Undisclosed content', u'post_id': 703, u'date': u'2016-07-02 18:08:59'}, {u'user_id': 3396, u'title': u'Thanks guys', u'comment_id': 19982, u'content': u'Alex, this is so nice to hear, please stay in touch and let\'s push things forward... Thanks also for the link, will check them out and see how we could connect
Noemi, cool, thanks. Sounds very interesting. Reading...
', u'post_id': 769, u'date': u'2016-10-06 15:44:51'}, {u'user_id': 3, u'title': u"Let's spread the word?", u'comment_id': 16844, u'content': u'Thanks @ninabreznik and co.! \xa0I\'m just back online after a few days off the platform, and\xa0say we take these days to share your post.
\n\nAlso ping @Tomma who is close to some people in the ICC camps\xa0and has done great work herself\xa0- right up your street dear? \xa0Help us share this?
', u'post_id': 769, u'date': u'2016-10-03 14:42:57'}, {u'user_id': 2569, u'title': u'Fascinating and powerful', u'comment_id': 9617, u'content': u'This sounds like a brilliant project.
\n\nI really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market.
\n\nMore power to you. I will certainly follow your project very carefully.
\n\nI wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http://empowerhack.io/)
', u'post_id': 769, u'date': u'2016-09-29 12:02:35'}, {u'user_id': 4, u'title': u'Same as Noemi', u'comment_id': 14059, u'content': u'Hello @wave , I also was intrigued by this idea, but I don\'t get it. As far as I know, noise cancellation is predicated each one of us having a "personal" source of reverse-phase sound waves: my headphones, for example. They sample ambient noise (the hum of an aircraft\'s or train\'s engine), reverse the sample\'s phase and emit it in my ears. Your idea of emitting at the source is quite novel, at least I have never heard of it. Would love to know more!\xa0
\n\nAlso, as Noemi says, existing noise canc technology works best at cancelling steady white noise-type sound emissions.\xa0
', u'post_id': 776, u'date': u'2016-10-04 14:29:03'}, {u'user_id': 3, u'title': u'Happy to see things are moving ', u'comment_id': 12250, u'content': u'Keep up the great work! My advice is that for each post you include a call to action to the broader community where you ask for help. That also makes it easier to reach to the specialists in here, which \xa0we do manually, sort of.
', u'post_id': 776, u'date': u'2016-10-05 17:47:24'}, {u'user_id': 3448, u'title': u'Hi Noemi,\n\nWe are a group of students from ', u'comment_id': 10661, u'content': u'Hi Noemi,
\n\nWe are a group of students from Master of Interaction Design at Domus Academy. We are now working on Opencare project in colabration with WeMake FABLab in Milano. We have a lot of ideas we know \xa0
This idea has some difficulties about reversing technology which is already there (sound cancellat\u0131on). The way we wanted the prototype to work is that if we can use the existing technology of noise cancellation to design something that can be put on the baby in order to reduce their noise. We can further d\u0131scuss how we were proposing to use the noise cancellation technology here, but for now we have kept this project on hold.\xa0
\n\nActually we kept every project on hold and we are currently working on\xa0the Alzheirmer\'s Wristband. It is in process now
Hey @wave, fun fact: I was reading about your idea as I was flying and thinking how my next big purchase should be a set of noise cancelling headphones.To be clear: not necessarily because of crying babies \xa0Yet I don\u2019t understand how it would work because of the very uneven cries and peak sounds which are hard to counteract. Tell us more.
Hi Frank, thanks for introducing yourself and for joining OpenandChange project of projects so to speak, in such great capacity. Woodbine rocks\xa0
Ok, Alberto, probabilmente il "meccanismo" \xe8 un poco inusuale per dare mobilit\xe0 alle persone, ma potrebbe essere comunque interessante partire da ci\xf2 che abbiamo a disposizione ...magari chiedendo ai ragazzi dell\'ETH di Zurigo un aiutino!
\n\nPer il collegamento, prova partire da http://www.gennymobility.com/it.
', u'post_id': 689, u'date': u'2016-10-04 18:40:42'}, {u'user_id': 4, u'title': u'Bello, molto!', u'comment_id': 29956, u'content': u'Grazie,\xa0@Francesco_Maria_ZAVA . La sedia a rotelle con i cingoli\xa0che si vede nel secondo link mi ricorda certi strumenti che si usano nel trasloco dei pianoforti, e che possono trasportare carichi pesanti (e con il baricentro alto, perch\xe9 i pianoforti vengono messi in verticale per risparmiare ingombro) su per le scale. Fanno perfino gli angoli sui pianerottoli!\xa0
\n\nIl link a gennymobility risulta rotto.\xa0\xa0
', u'post_id': 689, u'date': u'2016-10-04 14:50:02'}, {u'user_id': 3185, u'title': u'A "simple" idea.', u'comment_id': 29065, u'content': u'Indubbiamente, costruire basi di dati ed applicazioni mobili finalizzate alla mappatura del territorio "accessibile" e "non accessibile" pe quanti si avventurano nelle nostre citt\xe0 ed intendano usufruire dei loro molteplici servizi (vedi http://portale.siva.it/it-IT/databases/libraries/detail/id-455), incontra la mia pi\xf9 totale ammirazione e gratitudine.
\n\nTuttavia, sicuramente anche per un moto di orgoglio e per un inalienabile desiderio di libert\xe0 e di riconoscimento del mio essere cittadino, ritengo occorra adottare un approccio complementare che cerchi di risolvere le specifiche esigenze di ciascun individuo, laddove le barriere materiali sussistono e rinforzino quelle culturali, realizzando soluzioni che consentano al nostro ausilio di disimpegnarsi in sicurezza oltre che con efficienza.
\n\nA questo scopo, nonostante non abbia competenze tecniche in materia, sto provando a realizzare un concetto partendo da questi esempi:
\n\n\n\nL\'idea di base \xe8 quella di realizzare un sistema di mobilit\xe0 modulare, parzialmente cucito su misura per alcune tipologie di utenza, che possa superare le "difficolt\xe0" del terreno e nel contempo costituire un concentratore di servizi e funzioni avanzate (comunicazione, monitorizzazione parametri, controllo ambientale di casa e postazione lavorativa, ecc.).
\n\nCerto, questo \xe8 chiedere le stelle... ma potrebbe essere l\'inizio costruendo quanto meno la rampa di lancio!
\n\nUndoubtedly, build databases and mobile applications aimed at mapping the territory "accessible" and "inaccessible" eg those venturing into our city and intend to take advantage of their multiple services (see http://portale.siva.it/it- He / databases / libraries / detail / id-455), meets my utter admiration and gratitude.
\n\nHowever, certainly for a surge of pride and an inalienable desire for freedom and recognition of my being a citizen, I believe we must adopt a complementary approach that seeks to address the specific needs of each individual, where the material barriers exist and reinforce cultural ones , creating solutions that allow to our aid to disengage safely than with efficiency.
\n\nTo do so, despite not having technical expertise in the field, I\'m trying to create a concept starting from these examples:
\n\nhttp://www.gennymobility.com/uk/genny/design;
\n\n">1. http://www.gennymobility.com/uk/genny/design;
\n\nhttp://www.newmobility.com/2015/06/stairclimbing-wheelchairs-fact-and-fiction/.
\n\n">2. http://www.newmobility.com/2015/06/stairclimbing-wheelchairs-fact-and-fiction/.
\n\nThe basic idea is to realize a modular mobility system, partially sewn tailored to some categories of users, which can overcome the "difficulty" of the soil and in the same time constitute a concentrator of services and advanced features (communication, monitoring parameters , environmental control of the home and work place, etc.).
\n\nOf course, this is to ask the stars ... but it could be the start of building at least the launching pad!
', u'post_id': 689, u'date': u'2016-10-03 09:34:19'}, {u'user_id': 3331, u'title': u'Stage', u'comment_id': 28458, u'content': u'@Moushira,I\'m sorry to hear that it\'s a \'stellar\' solution. We try\xa0to be very practical, applied and earth bound.
stage = \xa0version 2.x forked from experience 1999. Hardware\xa011 & 2.0. (Sorry,\xa0It\'s an iterative process.) We are prototyping the concept within the next weeks.
\n\nLet\'s have a chat/brainstorm. I\'m very interested.
', u'post_id': 689, u'date': u'2016-08-25 11:04:30'}, {u'user_id': 3069, u'title': u"@Rune, thanks for sharing, I wasn't aware of ", u'comment_id': 27797, u'content': u'@Rune, thanks for sharing, I wasn\'t aware of WeHandYou, and it is already a "stellar" solution, in my opinion,\xa0 thanks for sharing :).\xa0 I couln\'t tell from the link, but do you know at which stage is the project now?
', u'post_id': 689, u'date': u'2016-08-25 08:53:41'}, {u'user_id': 3, u'title': u'"because Segway is too mainstream"', u'comment_id': 26949, u'content': u'LOL, talking about inclusiveness\xa0this fits right in and well,\xa0a bit over the board - I\'m thinking of\xa0the need for hyper\xa0control over battery life and avoid being trapped somewhere..
', u'post_id': 689, u'date': u'2016-08-24 18:03:38'}, {u'user_id': 3331, u'title': u'Existing solutions', u'comment_id': 26020, u'content': u'Though wheelchairs not my speciality I have seen several solutions presented by scholars. For example:;\xa0Stairclimbing see:http://portale.siva.it/en-GB/databases/products/isoSearch?classification=122315 (so the NHS\xa0offers zero)
\n\nIn theory its simple:\xa0https://www.youtube.com/watch?v=ik286spRM1w
\n\nwhy dont you just buy one of these?\xa0https://www.youtube.com/watch?v=AaZLoUYXDSs or\xa0https://www.youtube.com/watch?v=O7otewMk9pc
\n\n( I actually saw one on the street the other day) Who dares hack a segway? And who dares using it?
', u'post_id': 689, u'date': u'2016-08-23 13:21:57'}, {u'user_id': 3331, u'title': u'Wheecharingling to the stars or the moon', u'comment_id': 23367, u'content': u'@Moushira, with \'Would it be possible to think of a mechanical system that can be attached to all \u201cstandard\u201d wheelchairs, \xa0that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits? \'
\n\nyou ask for the stars, but if we realize the WeHandU, i\'ts about what you ask. You join in with an idea for a solution/someone has a proposal, together we realize. You test the solution and you are happy , U reiterate improvements or abandon. Most important: We and U\xa0document opensource the result of the work for others to build on.
\n\nIt\'s not the stars but wouldn\'t it be getting you to the moon be good enough\xa0?
', u'post_id': 689, u'date': u'2016-08-23 13:03:03'}, {u'user_id': 4, u'title': u'A similar approach in Italy', u'comment_id': 19845, u'content': u'The city of Lecce launched a hackathon with students, hackers and wheelchair-bound individuals to collaboratively\xa0map barriers to individuals in town (story, in Italian).
\n\n\n\nThe approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point:
\n\n"wheelchair" = "no"
\n\nWhereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects ("nodes" or "ways") in OpenStreetMap rather than to coordinates.\xa0The results are stored as a layer\xa0in a CSV file on the city\'s open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer:\xa0http://umap.openstreetmap.fr/it/map/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15/40.3509/18.1826\xa0
\n\nThis was done by the wonderful @piersoft and fellow citizens.\xa0\xa0
', u'post_id': 689, u'date': u'2016-06-17 14:43:00'}, {u'user_id': 3247, u'title': u'Undisclosed content ', u'comment_id': 14204, u'content': u'Undisclosed content', u'post_id': 689, u'date': u'2016-06-17 12:45:50'}, {u'user_id': 8, u'title': u'Have you seen the interview with Raul Krauthausen?', u'comment_id': 8631, u'content': u'I read this and was reminded of the conversation with \xa0@moriel, @lujia, @ChristineOehme and @Luise_Kr\xf6ning about their product design project after this \xa0interview with Raul Krauthausen.\xa0
\n\nThey are taking a different approach in asking how to create environments which are \xa0\xa0\xa0inclusive by design and not by label.
\n\nSomeone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them.\xa0They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This\xa0allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.
\n\nMy two cents.
', u'post_id': 689, u'date': u'2016-06-01 07:07:16'}, {u'user_id': 3, u'title': u'is it healthy or not?', u'comment_id': 25291, u'content': u'\xa0Very interesting, perhaps you can qualify that in terms of how it helps or not those experiencing it? And can it be a collective process? With OpenCare at large, and Open&Change more specifically- it would be most remarkable to understand what task is there for communities to relief some of this experiences.. Have a look at Cosain - an initiative just starting in Ireland which is based on peer to peer support for mental health recovery, in very collective ways.\xa0Highly recommended partners for some of your activites I think..\xa0
', u'post_id': 736, u'date': u'2016-10-03 16:20:38'}, {u'user_id': 3393, u'title': u'Undisclosed content ', u'comment_id': 24446, u'content': u'Undisclosed content', u'post_id': 736, u'date': u'2016-09-30 08:03:40'}, {u'user_id': 3338, u'title': u'Preventive Mourning', u'comment_id': 21194, u'content': u'During the workshop, there were interesting ideas around the topic of "preventive mourning". Maybe @Village-Psy would like to share some more aspects on this topic?
', u'post_id': 736, u'date': u'2016-09-29 13:00:27'}, {u'user_id': 3402, u'title': u'We can cooperate', u'comment_id': 16569, u'content': u'Thessaloniki has the right size for mapping and get results quickly. The people who care know each other. Due to refugee\xa0wave they\xa0gained more experience and identified common problems.
\n\n@Pavlos\xa0I\'ve lost your workshop but we \'ll help this mapping\xa0anyway.\xa0Thank you!
', u'post_id': 736, u'date': u'2016-09-18 18:27:31'}, {u'user_id': 3338, u'title': u'Flowing between projects', u'comment_id': 11806, u'content': u'My observation is that many actors in Thessaloniki are active in more than one initiative, so there is this type of "fluid" flowing from one project to the other. Most of these people are characterising themselves as people "that care", and there is a strong sentiment of solidarity. Different groups have different approached on running their projects. For example, there are a few of them that mistrust any type of institutional suppport. This makes some people also get engaged\xa0in another project. The result is a very diverse set of attitudes towards volunteer action and the wider frame of care, something that is making it difficult to map, engage and scale. This is probably the case also in Athens, however communities in the capital have more opportunities in terms of funding, interaction spaces and publicity.
', u'post_id': 736, u'date': u'2016-09-29 12:57:45'}, {u'user_id': 3, u'title': u'Were you happy with the workshop?', u'comment_id': 9578, u'content': u'Hi @Pavlos, thanks for reporting.
\n\nDid you think people could connect their stories with dimensions of care? For example, in the Improve and Complement sections, were there projects in the room already contributing to some of those areas? I\'m thinking of the many "civic led project leveraging volunteering".
\n\nI can imagine, for example that\xa0"Schools supporting cooperativism" is\xa0mapped\xa0well by\xa0@T\xf3pio activities. So some areas could be better covered than others. Should we rely on the stories posted here to make those kind of connections?\xa0
', u'post_id': 736, u'date': u'2016-09-06 10:05:02'}, {u'user_id': 3414, u'title': u'Thank you!', u'comment_id': 16785, u'content': u'In fact it is an "international Idea" of various people living around the globe but are somehow connected to developemental issues, many of them\xa0 who are in contact with "Integral Theory" and "System Sciences"...
\n\nThere are Nuklei in formation in Germany, Spain and one possibility in Greece. This Nuklei schare common iseas about kooperative, solidary ideas about the next level of human development and are willing to act as facilitators and "pioneering projects" regarding new social and care models. So in it#s very own way CAPE is as well a synergy hub - which of course can be connected to others. Hope this will answer your question.
\n\nI will check your recommendation as well.
\n\nOther than the project you mentioned we are building a fuctional model with real people (CAPE) and make different kinds of "open" knowlege availabel for a broader group as well as developing alternative strategies... (humaniversity project within CAPE).
', u'post_id': 765, u'date': u'2016-10-03 13:09:31'}, {u'user_id': 3, u'title': u'Welcome!', u'comment_id': 10344, u'content': u'Hello @samadhi.0110 and welcome to Edgeryders. How did you learn about us?
\n\nAre you based in Greece? I\u2019m not sure how I can help because I don\u2019t understand the context, the problem which the CAPE project is trying to solve: \u201cPeople feel lost in the cacophony of\xa0indusrial, per profit and political chatter\u201d \u2013 this looks broad! I would recommend you check out\xa0someone @rainbowheart and his piece about his community/ synergy hub in Mont Soleil.\xa0
\n\nWhere would your living space be? Or is that already ongoing?
', u'post_id': 765, u'date': u'2016-10-03 11:39:06'}, {u'user_id': 3, u'title': u'Are more photos of interventions available?', u'comment_id': 10425, u'content': u'@Imagine_the_City hi. Thanks for being so generous with your thoughts, especially as a newcomer to this platform. If you are based in Thessaloniki (or are you in Chalkis?), you probably know the ladies at @T\xf3pio who are working with schools on creative redos of public spaces?
\n\nHow do you manage to stay independent if you\u2019re involving such different groups and people? After a while if your \u201crecipe\u201d for events is compelling and people self-organise to follow it, your events will have a life of their own and may be able to move off the grid. Do you coordinate in any way?
', u'post_id': 540, u'date': u'2016-10-03 12:57:37'}, {u'user_id': 3, u'title': u'Learning more about Flipped job market ? ', u'comment_id': 11965, u'content': u'Nice to meet you @Henrike, and welcome online, I\'m Noemi, a colleague of Caroline\'s, Jahn\'s and the crew, and have participated in the same\xa0format event\xa0in Brussels.\xa0Thanks to the group for organising and facilitating this workshop, and for tweeting during the day! Our workshop in brussels was happening at the same time and it was lovely to join forces, albeit virtually! Speaking of, I would be curious to learn about the initiatives of those who participated, any one\xa0that you liked in particular and feel you will be able to collaborate with in the near future? Hopefully some of these days we get to learn more about Flipped job market, I read you referencing elsewhere here on Edgeryders and from the site\xa0looks very interesting, except unfortunately I don;t understand German. Let me know if I can help in any way.
\n\n
Thank you for your comments.
\n\nOur garden is theoretically for children, then for their families. Which means that...
\n\nThe outstanding feature of our experience is the fact that we are not an intellectual or "political" movement, but the ordinary people of this district: a cross-section of families of both traditional and immigrant background, who take their children to the garden (basically a playground with trees). Everybody except the very, very rich.
\n\nHowever, we opened this garden in a situation of conflict, an object lesson for everybody on gentrification and the ruthlessness of real estate speculation: we did not put the politics into it, they did, and everybody has learned the lesson.
\n\nCommunities can be built on imagining the past, children help us to imagine the future together and learn to build solidarity - we love our place and its history, but anybody from\xa0Senegal or from\xa0Germany who also loves them is welcome;\xa0
\n\nIn this context, we do small things with major implications, for example:
\n\n- markets where parents give and take children\'s clothes for free, which teaches one enormously important things about the wastefulness of our society;
\n\nviolin lessons, chess\xa0and opera singing because we believe that "beautiful","elegant" and "difficult" things should not be the monopoly of a financial elite;
the only free football school in Florence, thanks to the unique Lebowski football team;
attempting to revive the dying crafts of Florence and discover the history of our district, with all its tremendous historical implications;
we are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market;
we are beginning to develop more sustainable ways of consumption, in a gradual way that everybody can understand, also thanks to the fact that we have a child\'s birthday party nearly every day in our garden! And a child\'s birthday party is a much better place to deal with these issues, than a smoke-filled meeting hall...
Whatever we do, we try to move together with as many other organisations as possible in our district - ranging from the parish church to the young people occupying an abandoned house, to small shopkeepers, to the very, very\xa0special Florentine institution of "Calcio Storico".
\n\nWe also want to provide the lowest level of basic services, which the "state" is dropping out of, and this is where the issue of health and other care interests us.
\n\nThe institutions first saw us as a harmless group of parents who wanted a place for their children to play,
\n\nthen more or less as enemies,
\n\nthen as a large group\xa0of voters who need to be humoured, as well as people who do for free what the state usually has to pay for.
\n\nWhich is alright, we\xa0neither hate nor love the dying institutions of our times.
\n\nWe love our people, our monuments, our trees, our bats and cats that come at night, and\xa0anybody else in the world who feels like us and realizes that this world should not belong to speculating private monsters or to cold public machines.\xa0
', u'post_id': 766, u'date': u'2016-10-01 17:58:49'}, {u'user_id': 4, u'title': u'Benvenuti (e alcune domande)', u'comment_id': 16521, u'content': u'Ciao @Amici_del_Nidiaci!\xa0
\n\nAn Italian myself, I know\xa0Florence a bit and understand how it must feel to you. Great that you are taking action! So, from what I understand, your action revolves around coming together to maintain a community garden.\xa0\xa0Can you tell us more about that? Is it mostly gardening, or do you do other activities too?
\n\nHere in Edgeryders, we have a few\xa0experiences which are\xa0somewhat similar. One\xa0is Prinzesinnengarten in Berlin. They sell food, run a small caf\xe9 and give courses in gardening. Real estate speculation is a problem for them, too. Here is the full story: @marcoclausen is one of its protagonists and could tell you more.\xa0
\n\nThe other one is Vake Park in Tbilisi, Georgia. In\xa0this case, a community formed specifically to protect the park from speculation. Among its leaders were @Nick_Davitashvili and others: here is Nick\'s\xa0beautiful\xa0TEDx talk.
\n\nLooking forward to hear from you!\xa0
', u'post_id': 766, u'date': u'2016-10-01 14:26:30'}, {u'user_id': 8, u'title': u'Hi and welcome :)', u'comment_id': 9265, u'content': u'Sorry to hear about the park. Perhaps there is inspiration to be drawn from members of the community who are facing the \xa0same struggles. So some people who immediatey\xa0come to mind are:
\n\n@jordan :\xa0https://edgeryders.eu/en/the-urban-shepherd-of-stockholm
\n\n@Nick_Davitashvili:\xa0https://edgeryders.eu/en/better-and-bigger-collective-action
\n\nThis work of building and caring for communities is challenging.
\n\nAs @marcoclausen points out
\n\n\xa0@marcoclausen, @ecl and @Caroline have alot of experiences in Berlin: See their stories here. But this kind
', u'post_id': 766, u'date': u'2016-09-28 13:48:47'}, {u'user_id': 3400, u'title': u'We are part of a 85-minute documentary!', u'comment_id': 29074, u'content': u'What if working together for the good of all was the most common business model? Discover A new Economy, starring seven initiatives including Sensorica and ours.
\n\nThanks @positive-voice for your comment.
@breathinggame, your story and goal really moving. Hope the expected\xa0prototype testing goes. Impressive the amount of people and partners you brought on board.\xa0
', u'post_id': 735, u'date': u'2016-09-29 15:21:52'}, {u'user_id': 3400, u'title': u'First interview of participants released', u'comment_id': 26038, u'content': u'@Noemi, the first interview was released yesterday on our channel and we will release one per week! :)
\n\n@Michel we started with CF and asthma but the idea is that projects emerge in different places. As a patient said, its a doctor\'s thing to separate diseases... but usually, asthma, allergies, etc are mixed. And yes it will include also games about good breathing and hopefully, people not affected with diseases can also become more aware about their health and invest in prevention. ^^
\n\nWe are working on the outcomes to be shown, for example visualizing the evolution of lung capacity, effects of doing therapy or not, etc.
', u'post_id': 735, u'date': u'2016-09-30 18:10:00'}, {u'user_id': 3340, u'title': u'Sanitation ', u'comment_id': 24000, u'content': u'Nice work @breathinggame, It\'s really a good revolution therapy treatment for lungs and chest weakness . I\'m sure that is not only those who have chest disease but also those who are in good condition. It\'s really needs to tell that it\'s a personal device. Is not necessary to tell that kids are curious and they can bring trouble sometime.
\n\nIs there any level for \xa0any step of lungs illness? \xa0And is that need any assistance to check the evolution of the patient?\xa0
', u'post_id': 735, u'date': u'2016-09-15 10:32:12'}, {u'user_id': 3, u'title': u'Subscribed!', u'comment_id': 21922, u'content': u'And look forward to the videos. It seems to me that gamejams and all the events where you are present are most useful for getting\xa0support. With anything involving technology the easiest is just to show how it works, so even inviting authorities/\xa0potential funders to gamejams might do the trick.
', u'post_id': 735, u'date': u'2016-09-14 06:21:36'}, {u'user_id': 3400, u'title': u'Evolution and testing', u'comment_id': 19731, u'content': u'Hi @Noemi and @Alberto. Thanks for your feedbacks.
In 2014, we started with the positive expiratory pressure therapy for CF children. It was in fact not the best move as the exercice takes about 30 minutes daily, which would require a lot of resources to have interesting games, plus the fact that the exercice is quite strict, so challenging to make it interesting. We then thought about other, more free gameplays, which we have to develop. We are now working on mini-games for asthma, that are about triggers and how to take the medicine. We want to reuse the work done for CF to build short games for aerosoltherapy.
\n\nRegarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved.
\n\nMany learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels.
We invite you to subscribe to our YouTube, where we are going to release 15 interviews of what participants learned during the last gamejam. In the next months, we intend to do gamejams in Montreal, Geneva, and possibly Paris and Lima if you d\'like to join there or remotely!
', u'post_id': 735, u'date': u'2016-09-10 13:04:58'}, {u'user_id': 4, u'title': u'Second that', u'comment_id': 14057, u'content': u'Congrats @breathinggames ! I also would like to know about the testing. opencare is about honest sharing of knowledge, including things that don\'t quite work as expected. In fact, failures (especially non-lethal)\xa0tend to be more interesting datapoints than successes, because we can learn more from them.
Hi @breathinggames, whoa you rock. How did the prototype testing go, I imagine this is the kind of practical solution that literally everyone loves?\xa0
\n\nPS Congrats for the large numbers of partners you managed to bring on board (I counted 18 on your website!)
', u'post_id': 735, u'date': u'2016-09-09 18:51:03'}, {u'user_id': 3411, u'title': u'BLOODe is in our blood too.', u'comment_id': 16323, u'content': u'@BLOODe we would like to help you to\xa0create synergies and collaborations, so as to maximize the impact of your project. As for the costs of the logistics, for which, @Noemi did ask for, we would like to present you the volunteers\' working team of several EVS groups in Europe who would lovely offer their services for good. Keep walking.\xa0
', u'post_id': 756, u'date': u'2016-09-29 15:32:40'}, {u'user_id': 3, u'title': u'Do you manage to cover the running costs?', u'comment_id': 6882, u'content': u'@BLOODe welcome on board, it\'s lovely to meet you!
\n\nWhat you do is different than volunteering, you do entrepreneurship which I know - from working with Edgeryders -\xa0takes all of one \xa0because it involves coordination, management, comms all at once and by limited number of people. Do you manage to cover the costs of the logistics of\xa0your work? What about paying yourselves for the hard\xa0work?\xa0
', u'post_id': 756, u'date': u'2016-09-20 16:23:34'}, {u'user_id': 3411, u'title': u'Frodizo means Care in Greek', u'comment_id': 16310, u'content': u'@Frodizo Really brilliant and moving what you do in Patra. Hope as for the elder people to be reliefing and refilling for their lifes too.\xa0
\n\nContinue the good work. We do support.\xa0
', u'post_id': 760, u'date': u'2016-09-29 15:28:06'}, {u'user_id': 3, u'title': u'I love your model', u'comment_id': 7760, u'content': u'Hey @Frodizo\xa0team, welcome to Edgeryders and many thanks to @Pavlos for inviting you.
\n\nYou seem to place a lot of focus on partnering or complying with government regulations, why is that needed if you are providing services at home? is it only to gain the trust of the people needing the services?
\n\nI think your 6 month cycle activities are brilliant for getting structured and stopping to evaluate. I\'ve seen a similar initiative in COSAIN, an Irish initiative which is also community led and where authors are skillfully building a support base among formal care providers, communities in need and an unexpected large share of therapeutic art caregivers, which is very interesting - for the proof of concept they are using a museum\'s space once a week. I strongly encourage you to go in and say hello!
', u'post_id': 760, u'date': u'2016-09-22 23:02:51'}, {u'user_id': 137, u'title': u'@Matthias, I just came across this article about ', u'comment_id': 21206, u'content': u'@Matthias, I just came across this article about Washington\'s rivers... yet the situation not so much different from those we discuss here, and some tips how to engage in different ways with the area.\xa0
', u'post_id': 752, u'date': u'2016-09-29 14:49:10'}, {u'user_id': 3422, u'title': u'Lovely bagmati response', u'comment_id': 14306, u'content': u"\xa0Yes the Bagmati\xa0does have its issues but it's cultural importance is intriguing. The residents of Kathmandu\xa0have been cleaning up the banks of the river for the past 150 Saturdays\xa0and they have not missed a single Saturday yet even during the earthquake which is \xa0it is remarkable. Yes I think that the arts has a\xa0way of bringing together a lot of different groups and using aesthetics is a way to introduce complicated issues \xa0in a accessible manner.\xa0
", u'post_id': 752, u'date': u'2016-09-21 02:40:51'}, {u'user_id': 5, u'title': u'Lovely Bagmati', u'comment_id': 10812, u'content': u'@Natalia_Skoczylas haha yes, Bagmati is unforgettable \u2026 I have a lively memory of this (stench on the) bridge above Bagmati on our usual cycle ride to Sanepa
And @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I\'m following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it\'s carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let\'s be realistic for the near term
@Matthias Look, don\'t you miss the smell of Bagmati ?
Hi Pavlos,
\n\n\'More power to your arm!\'
\n\nI found your point about the disconnect between wealthier Northern European countries and the reality of Greece particularly interesting and enlightening. What we consider to be \'alternative\' approaches to the future should be our only way\xa0forward.
\n\ni am reminded of the saying "when things seem to be falling apart, perhaps they are falling into place."
\n\nIt seems that the Greek community could benefit from something like the Scottish Community Right to Buy scheme (http://www.gov.scot/Topics/farmingrural/Rural/rural-land/right-to-buy/Community) Which would allow communities to invest money, tiem and energy into innovative community practices safe in the knowledge that the land they do this upon will not be taken from under them in the event of a systemic failure.
\n\nI do not know how easy it is to create law in Greece (i imagine it\'s as difciult as anywhere else!) but is this something that could be advanced at a high level? Just a thought
\n\nAlex
', u'post_id': 543, u'date': u'2016-09-29 12:21:19'}, {u'user_id': 1514, u'title': u'Food Related Links', u'comment_id': 24307, u'content': u'Hi\xa0@Jenny Gkiougki,\xa0you might find interesting\xa0this list of links collected by @elf_Pavlik and others:\xa0https://github.com/ouisharelabs/food-dashboard.
', u'post_id': 750, u'date': u'2016-09-28 15:03:36'}, {u'user_id': 4, u'title': u'Reminds me of someone :-)', u'comment_id': 20365, u'content': u'@Jenny_Gkiougki , have you already met @Matthias and the Epelia\xa0crowd? I think you have much in common, and may even find ways to work together. They want to be an online market place for products like the one you are already interested in. Let us know if you want an introduction.\xa0
', u'post_id': 750, u'date': u'2016-09-23 11:06:53'}, {u'user_id': 3417, u'title': u'Hi there,\n\nI will try to answer you briefly ', u'comment_id': 14990, u'content': u'Hi there,
\n\nI will try to answer you briefly and to the point as I just got back from hospital and I need my rest.\xa0
\n\nFor the situation with CSAs in Greece please read my report here\xa0http://urgenci.net/wp-content/uploads/2016/05/Overview-of-Community-Supported-Agriculture-in-Europe-F.pdf
\n\nAs for AFDS in Thessaloniki, as we said our project is still underway and nowhere near its end, but I can say that there is a vast array of different projects ranging from 100% legitimised cooperatives to completely informal groups tending a small garden feeding the poor and refugees. And new initiatives are springing up all the time. It is a truly exciting endeavour mapping them all.\xa0
\n\nI hope this covers your questions
Hi @Jenny_Gkiougki and welcome!\xa0It seems to me from reading you and @Pavlos that there are very active groups at the network level trying to promote new agendas for food production and consumption. And more so, for more cooperative frameworks like @ChristineSa\xa0. What have you discovered in your mapping, which\xa0are the initiatives running food alternative systems?
\n\nAlso, how are existing\xa0CSA schemes in Greece working? I\'m guessing even at informal levels there are some, and I\'m a fan of the model although I\'ve seen in practice how hard it is to sustain itself in terms of long term trust and ability of consumers to deal with less good crops.\xa0\xa0
', u'post_id': 750, u'date': u'2016-09-22 09:29:02'}, {u'user_id': 3310, u'title': u'Thanks to all of you for the fruitful comments', u'comment_id': 27809, u'content': u'I apologise for not replying immediately to your comments. You are all giving a double feedback: a) it\'s an emergent issue the re-working of professions given the BIG changes in the fields of knowledge and sharing at large: b) your comments are of inspiration in developing a wider and/but keen strategy.
\n\nYes, there are some first outcomes:
\n\na) the open infrastructure was presented at EMEMITALIA,\xa0 the national congress on e-Learning that in Modena on september 6th
\n\n\n\nb) next academic year will probably include 7 Master instead of 5 in a open infrastructure and tutors will be trained by a "open" approach;
\n\nc) least but not last, three trainees (all nurses) are collaborating online to create emojis on healthcare, diagnosis and surgery issues. More to come... Seen your interest it might be useful to share some thoughts and network a bit on such perspective together in a videoconference perhaps..
\n\n\xa0
\n\n\xa0
', u'post_id': 524, u'date': u'2016-09-28 09:20:56'}, {u'user_id': 104, u'title': u'Inspiring', u'comment_id': 26035, u'content': u'Really encouraging to read this, Frederico. I am involved in an emerging group (we call it Caring for Life) looking to acquire care homes in the UK and start to liberate the staff and transform the way care is given. Like you, we are inspired by an open paradigm of care giving, as well as stories of self-managing organisations such as Buurtzorg. It is early days yet but when we have got a bit further, it would be good to hear more about your work and\xa0 approach. \xa0
', u'post_id': 524, u'date': u'2016-09-27 20:34:13'}, {u'user_id': 3362, u'title': u'Great!', u'comment_id': 23739, u'content': u'I got excited reading your piece @Federico Monaco!\xa0Your approach to learning\xa0and willingness to experiment is exactly what the educational system needs right now. This sums it up quite well for me: "By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals.".\xa0@trythis has some interesting\xa0points of inspiration as well...
\n\nAre there any particular sources of inspiration you use to come up with new ways of teaching? Have your experiments\xa0ever backfired?
', u'post_id': 524, u'date': u'2016-09-12 21:58:30'}, {u'user_id': 2551, u'title': u'Very interesting!', u'comment_id': 20397, u'content': u'I\'m very interested in what you\'re describing. I know a couple of people in the med field, but have a different background (materials) myself. Usually I can also bring something to the table though.
\n\nOff the cuff a couple of pointers that you might find interesting:
\n\nMedical experience / learning in war and peace are somewhat different (perhaps you can borrow approaches as is convenient)
Over time (and hierarchy levels) there is also quite a shift in approach to matters (look up e.g. Florence Nightingale or Ignaz Semmelweis)
I think there is a lot in the medical field which is extremely bad to codify in(to) written language but can be learned face to face. I would think a "social network of people who went through your problems" would be useful particularly in regard to doctor-patient info responsibilities (the doctor is pressed for time and may not be able to relate to a patients situation as well as a "veteran" from the network).
Thanks @Alberto.
\n\nI have just added the link to http://puntozero.github.io/ and the number of students involved (about 150 this year).
\n\nWhile seems easier to involve patients, patrons and makers in open discussion about innovation and shared practices, the world of education and professionals themselves should undergo a rethinking towards wide collaboration and practicing in communities in the fast changing, seamless and heterogenous world we all live in.
', u'post_id': 524, u'date': u'2016-08-27 19:09:17'}, {u'user_id': 4, u'title': u'Link?', u'comment_id': 7599, u'content': u'Very interesting, @Federico_Monaco . I guess communities of care start in (medical) school! If people \u2013 especially care professionals \u2013\xa0are trained to think in that way, they can have more of a positive influence in getting a community going. When I say "a community", I think of responsibility: a community of care happens when people take at least some responsibility for caring for each other.
\n\nYou forgot to include a link to Puntozero in your post.It would be nice to know who else is involved, how many students you have taught etc.\xa0
', u'post_id': 524, u'date': u'2016-08-27 16:03:39'}, {u'user_id': 3414, u'title': u'recover the lost space of "participation" and "knowlege"', u'comment_id': 20815, u'content': u'Hallo Vassili,
\n\nover decades we lost our acces to knowlege, public decision making (if there was ever such a thing?) and there is much need to create a base for organizational intelligence and social decision making. There are some tools available like wikipedia and e-govenance, gut to difficult to manage for the broad society and often higly manipulated by "editors". To find a way for decisionmaking, maintaining bottom up decision making by meta-rules that can be adjusted in an iterative democratic manner and making wisdom available not driven by profit intersts.
\n\nI wish you good luck, because your issues have a high priority for societal development and as well for a socio-economic development.
\n\nBert
', u'post_id': 528, u'date': u'2016-09-27 18:54:56'}, {u'user_id': 3331, u'title': u'Turning a technology into a product', u'comment_id': 14069, u'content': u'Nice post @Vassilis Giannakopoulos - SciFY\xa0
\n\nId like to know more about how you do it (the report seems to be missing) thats why we propose the WeHandU initiative, Maybe we could collaborate?
\n\nHow do you \'recruit\' your \'clients\'?
', u'post_id': 528, u'date': u'2016-09-20 12:20:39'}, {u'user_id': 3388, u'title': u'The gap', u'comment_id': 11657, u'content': u'Hi Alberto!
\n\nThe two main reasons are the following:
\n\nmany (not to say most of\xa0the) players join consortia to submit proposals for EU funding, looking just for either cash, or for a way to complete "deliverables" with the minimum effort required. This attitude does not deliver actual usable results
Most researchers are not "market-savvy". Most of the times they think that, since a technology exists, the problem is solved. But nothing is farther than the truth! Turning a technology into a product that solves a problem,and creating a supporting community is an exciting but difficult venture!\xa0\xa0\xa0
That\'s the gap we found...
', u'post_id': 528, u'date': u'2016-09-05 11:57:36'}, {u'user_id': 4, u'title': u'Interesting', u'comment_id': 9055, u'content': u'Thanks for the vote of confidence, @Vassilis_Giannakopoulos_-_SciFY \xa0. And thanks also for this great experience.
\n\nI was trained as an economist, and I find it easiest to think about what you do in terms of fixing a market failure. In a perfectly functioning market,\xa0the stuff that is only a few months away from being productive would be immediately picked up by somebody who spots an opportunity for gain.\xa0
\n\nWhat do you think causes the market failure? Why is it that you can look at a paper and see the opportunity, while others cannot?\xa0
', u'post_id': 528, u'date': u'2016-09-02 14:21:05'}, {u'user_id': 3402, u'title': u'@Noemi is true! Very busy', u'comment_id': 19323, u'content': u'@Noemi I mention @To-Steki in my story but it was before it\'s participation so I must correct the name and tag it. About 6 months the people from Steki made the delivery of all of those backpacks (that I was preparing) to Eidomeni. And we have had a very good cooperation. By the way, in Thessaloniki there are many active and solidarity groups. In their own way but active and helpful! This list is in greek but maybe you can have an idea.It\'s a short mapping of Thessaloniki\'s Municipality area\xa0 http://www.thessaloniki.gr/userfiles/file/Dioikisi(NeosOEY)/AytTmEthelNeolaias/LISTA1842016.pdf
', u'post_id': 748, u'date': u'2016-09-25 00:17:57'}, {u'user_id': 3416, u'title': u'Undisclosed content ', u'comment_id': 17488, u'content': u'Undisclosed content', u'post_id': 748, u'date': u'2016-09-24 16:09:03'}, {u'user_id': 3, u'title': u'Is there a social solidarity clinic in Thessaloniki?', u'comment_id': 15277, u'content': u'Welcome on board, @To-Steki, I\'m curious if the clinic\xa0is another initiative or just a metaphor you use? The many informal or established\xa0groups you mention makes it seem like Thessaloniki is\xa0very busy place\xa0(@Aravella_Salonikidou\'s story confirms this!), it\'s just that I\'m not sure if this is a real physical place or not..\xa0
\n\nThanks!
', u'post_id': 748, u'date': u'2016-09-24 15:22:08'}, {u'user_id': 3416, u'title': u'Undisclosed content ', u'comment_id': 11331, u'content': u'Undisclosed content', u'post_id': 748, u'date': u'2016-09-24 16:06:42'}, {u'user_id': 4, u'title': u'Great work..', u'comment_id': 8292, u'content': u'Super-interesting, @To-Steki , thanks for sharing.\xa0
\n\nCan you say more about the legal and organizational structure of the Center? You write that it is "completely self-organised place, depending exclusively on volunteers\u2019 work". But there must be a legal entity behind it, because, as you write "When the Public Electricity Company cut the power in the hostel due to high debt, we reconnected the supply to our name". Who do you mean by "we" in this sentence? Is there a registered\xa0Migrants Social Center NGO?
\n\nI am asking because we found some highly effective groups in Greece who have no legal existence at all: they are just spontaneous aggregations of citizens. I guess your local social solidarity clinic is one of them, certainly there is one in Helliniko, in the Athens area, which we visited last year.\xa0
\n\nGood luck with your efforts! And just one more thing: I could not find a "Donate" link on your website (I can\'t read Greek, but you have Google Translate integration and a English home page).\xa0
', u'post_id': 748, u'date': u'2016-09-24 09:34:10'}, {u'user_id': 2915, u'title': u'The Plenty Ambulance Service', u'comment_id': 20436, u'content': u'In 1977 the South Bronx in New York had the worst healthcare in the country with one doctor per 100,000 people. \xa0It was a time of "white flight" with scores of lareg apartment buildings abandoned by the tenants and then often bured by the owners (or someone) to collect insurance money. \xa0It was the closest the USA has come to an urban environment that resembled many cities in Europe after WWII.
\n\nAt the time I was living at The Farm down south in Tennessee, then the largest colledctive in the country. \xa0It was famous for a lot of reasons, not the least of which was a concentration of hippies and dropouts who looked like typical countercultural stereotypes\xa0but were in fact a concentration of highly educated and motivated people. \xa0We used to sometimes say, "don\'t take over the government. \xa0Take over the government\'s function."
\n\nIn that spirit, we created a nonprofit organization, Plenty, to do good work in the world. (Plenty still exists and thrives today: plenty.org). \xa0Because we had to provide emergency health care to ourselves (the Farm had more than 1000 people at the time) and because some of those educated people wanted to apply themselves toward meaningful work that was also interesting, we had an unusually large group of EMTs, paramedics, nurses and other health care workers.
\n\nSeeing how bad things were up in the south Bronx, we decided to go up there and see for ourselves if we could lend a hand.
\n\nFast forward to early 1978. \xa0A group of us located a suitable building and squatted in it, fixing it into a livable place. I was part of that early group.(That included converting the coal-buring furnace to a giant woodstove that we fueled by finding leftover wood products in nearby abandoned factories. \xa0I went on may of those firewood runs. \xa0Unforgettable!)\xa0My daughter was born in that building, home delivered by one of our Farm midwives.
\n\nLater that year, Plenty began a free ambulance service to the nearby residents. Soon enough some grant money was procured, equipment bought and\xa0the ambulance service kicked into high gear, saving many lives. \xa0The service lasted for six years, until crack and automatic weapons made the place much more dangerous than it already was. \xa0But the good news was that the service had by then embarrassed the city so much by doing what the government was not doing, that the city improved its service to that community.
\n\nRelevant to this topic: nobody asked for permission to do this. \xa0No permits were applied for or obtained until much later when a lot of publicity was generated, and\xa0the city couldn\'t exactly turn it down.
\n\nI personally was a small player in this particular saga, and there is much more to the story - it was an incredible experience. \xa0But I remain in awe today at the vision, the guts and the perseverance of the main people driving the project. \xa0 It was the spirit of OpenCare at its finest.
', u'post_id': 509, u'date': u'2016-09-23 15:37:46'}, {u'user_id': 3333, u'title': u'A revelatory article', u'comment_id': 14411, u'content': u'@TINO SANANDAJI, thank you for this clear writing, very well explained!
\n\n\xa0 or me, it was important to know the difference between inovation and\xa0\xa0disruptive entrepreneurship, and\xa0\xa0evasive entrepreneurship.
\n\n\xa0Another example of such action is also the movement \xa0Let\'s do it, \xa0https://www.letsdoitworld.org/, originated in Estonia, who now functions \xa0like an institution, but it began on a smaller scale, as a private initiative.
\n\n\xa0That could also be a challenge for the status of the evasive entrpreneurship, because when the initiative grows, it also grows into an establishment, with rules and \xa0papers to fill etc etc.
\n\n\xa0And I could also give an\xa0example\xa0that does not relate to care giving, but to arts.
\n\nThere are hundreds of music composers (who write classical contemporary music) who do not register their scores to any property rights companies, because this is a difficult and long procces, to many papers to fill for artists and too little gain.
\n\nSo many of them just give their music to\xa0different performers who do not pay rights to play the music (they are also poor and need to make a name for themselves)
\n\nThe avantgarde art is \xa0usually very far form the industry, there are no kings\xa0who would hire composers for their courts :), and it is impossible to make a living from actual art, most of them have other jobs.\xa0
\n\nSo, the evolution of\xa0modern music is made by simply avoiding the institution of author rights when dealing with indepenendent performers.
\n\n\xa0We would not do so, though, when dealing with National Orchestras or \xa0other rich established music institutions \xa0
@Tino_Sanandaji great work, this framework is starting to inform a lot the way we think of projects coming in. Two more examples that you might want to dig deeper into:
\n\n1/ Cytostatic network in 2012-2013 in\xa0Romania : community led organised efforts to\xa0bring\xa0patients unavailable drug treatments and transport them across the borders
\n\n2/ An\xa0acupuncture clinic in Dartmoor UK built as a charity "working on a donation basis was my nod to being a non-commercial entity, which (as far as I know) means the clinic is not subject to licensing - similarly to people who volunteer in hospices, addiction recovery centres etc." (steelweaver)
', u'post_id': 509, u'date': u'2016-06-29 08:39:42'}, {u'user_id': 3393, u'title': u'Undisclosed content ', u'comment_id': 26037, u'content': u'Undisclosed content', u'post_id': 529, u'date': u'2016-09-23 07:05:32'}, {u'user_id': 3390, u'title': u'Lasting effect', u'comment_id': 23722, u'content': u'Hi @Village-Psy,\xa0
\n\nWhat followup do you provide/offer to ensure longterm positive outcomes?
', u'post_id': 529, u'date': u'2016-09-22 10:52:19'}, {u'user_id': 3393, u'title': u'Undisclosed content ', u'comment_id': 20323, u'content': u'Undisclosed content', u'post_id': 529, u'date': u'2016-09-14 08:04:32'}, {u'user_id': 3403, u'title': u'Need for a traumaspecialist? ', u'comment_id': 14858, u'content': u'hello @Village-Psy
\n\nI am a traumaspecialist (an integrative one, relying on the works of Peter Levine, Bessel van der Kolk, Pat Ogden, e.o). I provide workshops on trauma, supervision and individual traumatherapy in my Trauma Tour Bus. In the winter I want to help in the refugee camps in Greece - since that will be a volunteer job, I am looking for paid work in the region too ... Are there opportunities at your village? Thx for replying @Ybe
', u'post_id': 529, u'date': u'2016-09-13 07:52:00'}, {u'user_id': 3393, u'title': u'Undisclosed content ', u'comment_id': 11214, u'content': u'Undisclosed content', u'post_id': 529, u'date': u'2016-09-14 09:21:06'}, {u'user_id': 3, u'title': u'Dramatherapy and other activities suitable?', u'comment_id': 9381, u'content': u'Hey, this village\xa0reads like a novel approach to mental wellbeing and its openness in the sense of free choice - "in 8 days can experience nine different approaches in order to arrive at what is the most compatible with their own interests".\xa0I\xa0\xa0am wondering what exactly people do during the session - is dramatherapy happening or other sorts of activities? I\'m reading on your English language\xa0website that you also did music therapy, playtherapy,\xa0therapeutic horseriding..? Did those work out the way you envisioned?
\n\nPing @Alex_Levene for his interest in healthcare + arts, and @Thom_Stewart because he runs a similar pilot experiment in Ireland - opening up practices in psychoterapy to new elements, mostly community based.
', u'post_id': 529, u'date': u'2016-09-05 14:29:00'}, {u'user_id': 3, u'title': u'So useful to hear.', u'comment_id': 11098, u'content': u"We're in time to make it better, and run with similar stuff in the future!\xa0
", u'post_id': 5881, u'date': u'2016-09-22 23:39:38'}, {u'user_id': 116, u'title': u'to me...this is philosophy put into action', u'comment_id': 7659, u'content': u'i see the seeds of complexity langiage transformed in a real approach.
\n\nthis is a music which i never heard before\xa0
\n\nthis is a lot of academic gold transofmerd not into bla bla but in a real opportunity.
\n\ni am not saying it is perfect, i am nto sayd it will be working
but it is the best attempt i know\xa0
', u'post_id': 5881, u'date': u'2016-09-22 14:17:05'}, {u'user_id': 3390, u'title': u'Trauma healing for first responders', u'comment_id': 29075, u'content': u'Hi\xa0@ybe, Have you considered providing trauma healing for cops? They are the ones who inflict much of the trauma in my area and they could use a big dose of emotional\xa0processing!
', u'post_id': 740, u'date': u'2016-09-22 10:49:46'}, {u'user_id': 3331, u'title': u"I'd love to exchange informations", u'comment_id': 28733, u'content': u'Dear @ybe, can I propose that we do the discussion in a shared document, i\'ll send you the link. Then it could evolve into some structured persitent document serving others sharing our thoughs?
\n\nOthers wanting to join, please send me a message.
', u'post_id': 740, u'date': u'2016-09-20 13:22:38'}, {u'user_id': 3403, u'title': u"@Rune I think you're right: psychological aspects should ", u'comment_id': 28464, u'content': u'@Rune I think you\'re right: psychological aspects should be taken into account. Medical diagnosis and treatment are often very \'traumatic\' = overwhelmingly disturbing. I don\'t know if I am the right person to advise Wehandyou - there must be traumaspecialists more familiar with the people affected by these kinds of\xa0 trauma and the technology involved. Nevertheless, I am open to collaboration. Lets have a bit of a longer conversation on skype? What do you think?
', u'post_id': 740, u'date': u'2016-09-16 20:22:50'}, {u'user_id': 3331, u'title': u'Collaboration idea', u'comment_id': 27812, u'content': u'Hi @ybe. It\'s a long post now so excuseme if I\'ve skimmed too much. As @Alexander_Shumsky posted the WeHandU\xa0we were talking about the importance of psycological aspects of assistive technology. My experience is that people having sustained a stroke, spinal cord injury or living with MS have a need to talk about it. I\'s not what you intend by trauma, but I think it could be interesting include your expertice in a 360* service.
\n\nWhat do you think?
', u'post_id': 740, u'date': u'2016-09-16 07:37:48'}, {u'user_id': 3403, u'title': u'ok sounds like a good plan already\n\nI just ', u'comment_id': 27567, u'content': u'ok sounds like a good plan already
\n\nI just send you an email. My mailadress is ybe@traumatour.eu and skype is chez_filly19
', u'post_id': 740, u'date': u'2016-09-17 12:59:01'}, {u'user_id': 2569, u'title': u'Absolutely', u'comment_id': 27318, u'content': u"I suggest a Skype call early next week. Perhaps Tuesday. you can email me alexalevene[at]gmail[.]com
\n\nI'm no longer at the camp but i can definitely put you in contact with the best people to organise with. I know they would be really greatful if you could go along for a few days.\xa0
\n\nThe best use would probably be to spend a day talking to the management team and helping them develop an ongoing practice. Then a couple of days running large group training the daytime and one-to-one sessions in the evening.
\n\nThere are a lot of people there who have a lot of different personal mental health issues. Its probably a better use of your time to focus on this 'secondary' trauma, rather than working with people who have experienced it.
\n\nAlex
", u'post_id': 740, u'date': u'2016-09-16 20:22:49'}, {u'user_id': 3403, u'title': u'@Alex_Levene\n\nI would be happy to be of help ', u'comment_id': 26955, u'content': u'\n\nI would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? \'Help with \'secondary\' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal\xa0 conversation? Should we provide time for individual help too?How many people are involved?
\n\nI could come over for a day or two, or tree in october of november, before touring to the south. I am fluent in EN, DE, FR and NL. Would it be a good idea to skype and talk things through?
', u'post_id': 740, u'date': u'2016-09-16 20:21:27'}, {u'user_id': 2569, u'title': u'Hello and welcome @ybe. Thanks for sharing your ', u'comment_id': 26040, u'content': u'Hello and welcome @ybe. Thanks for sharing your story.
\n\nI know for certain that your experience and skills would be really useful to the volunteer organisations working down at the Calais refugee camp.
\n\nMany volunteers have been working out there for the last year and there is a real need for access to professional mental health care.\xa0
\n\nIt will be required even more when the French Authorities start their planned clearance of the camp. At the moment we do not know when this will happen. But the volunteers current support nearly 10000 refugees on the camp and will probably put their lives on the line to help protect the refugees and their things during the eviction. It will certainly be highly emotional and very fraught.
', u'post_id': 740, u'date': u'2016-09-15 16:36:39'}, {u'user_id': 3, u'title': u'Whoa.', u'comment_id': 24948, u'content': u'One reads about NGOs becoming institutions and not in a good way.\xa0This is very hard to digest in the real world, since your\xa0mission is supposedly to fix\xa0a problem. Sorry to hear about that unfortunate experience, we will be on the lookout for other options.
', u'post_id': 740, u'date': u'2016-09-14 10:53:59'}, {u'user_id': 3403, u'title': u'I am another you, you are another me', u'comment_id': 23874, u'content': u'@noemie, thx for thinking along with me.
\n\nIn my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I\'ve helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.
\n\nAs for Medecins sans fronti\xe8res, I applied for a position in the field - but was not accepted. Like many \'traditional\' NGO\'s they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the \'official\' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,\xa0 are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.
', u'post_id': 740, u'date': u'2016-09-14 09:03:19'}, {u'user_id': 3403, u'title': u'indeed a good plan needs a map', u'comment_id': 22569, u'content': u'Thx @andra.B for your suggestion. I am indeed planning to do that in the next few weeks. I\'ll keep you posted
Ps Where are you living, maybe I can come along and meet you?
', u'post_id': 740, u'date': u'2016-09-14 10:48:47'}, {u'user_id': 2507, u'title': u'Connecting with local entities en route', u'comment_id': 21964, u'content': u'Dear @ybe - it\'s great to hear of your initiative!\xa0Following up on Noemi\'s suggestion - I agree that local organizations/groups/individuals on your trail could also be insightful in identifying groups in need of your services, offer insights on any cultural differences, or\xa0support you in a number of other ways (including in overcoming language barriers if existant). I was wondering if you have considered mapping your desired/planned route to facilitate connecting with local groups/individuals before you arrive - maybe a very basic online map? I think it could facilitate reaching out to people on the route and could have potential as a planning tool.
', u'post_id': 740, u'date': u'2016-09-14 09:13:03'}, {u'user_id': 3, u'title': u'Are there cultural differences to account for?', u'comment_id': 20332, u'content': u'@ybe I\'m happy to meet you, my name is Noemi and while I haven\'t dealt with the issue at all, maybe this is silly to ask: but\xa0I\'m wondering if people in different places have own preferences to express themselves, or if language can be an obstacle?
\n\nHave you tried getting in touch with\xa0M\xe9decins Sans Fronti\xe8res\xa0for a collaboration? I was reading about them offering psychological first aid, but apparently there are not nearly enough people on the ground.
', u'post_id': 740, u'date': u'2016-09-14 08:00:01'}, {u'user_id': 3403, u'title': u'Hello Pavlos, thx. Yes I already read their ', u'comment_id': 17335, u'content': u'Hello Pavlos, thx. Yes I already read their story and and also the one of Aravella Salonikidou, I left a message for both of them and am waiting for their response. Looks like in Greece a lot of people are doing good work
Hi @ybe, have you read the story of @Village-Psy and the work they do with education on healing\xa0trauma on Mt. Pelion, in Greece?
\n\nhttps://edgeryders.eu/en/village-psy-encounters-in-psychotherapy
', u'post_id': 740, u'date': u'2016-09-13 20:40:40'}, {u'user_id': 3403, u'title': u'Thx @steelweaver for your comment. As for the ', u'comment_id': 13769, u'content': u'Thx @steelweaver for your comment. As for the somatic apporach, I totally agree. I often use somatic experiencing, especially for chock trauma. Before going to Calais, I need to look up soms good group exercices for the volunteers. Suggestions welcome.
', u'post_id': 740, u'date': u'2016-09-18 15:49:58'}, {u'user_id': 393, u'title': u'models of group trauma management', u'comment_id': 13679, u'content': u'Hi @Alberto, and thanks for a great and inspiring post, @ybe!
\n\nA couple of examples of previous models spring to mind:
\n\n- Somatherapy was developed during the military junta in Brasil as a combination of psychotherapy, capoeira and anarchist theory. It favours use of enjoyable, play-based physical activities and emphasises placing individual mental health within the larger political context.
\n\nPredictably enough, given my day job, my bias is towards body-based practices, or at least forms of psychotherapy that incorporate some aspect of physical engagement - I don\'t know if @ybe already incorporates these ideas in her practice, and in any case other forms of psychotherapeutic intervention are also very effective.
\n\nBut the advantages of this kind of approach, as I see it, are:
\n\nThey engage with the somatic anchoring of trauma, bringing quick results.
The physical nature of the practices can help overcome language difficulties, which might be useful in a scenario like Calais.
They can be applied efficiently in a group setting - rather than waiting their turn to speak, everyone engages in the practices at once.
Because individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and/or more people can be seen.
Somatherapy in particular also emphasises the importance of group work as part of building a community of solidarity and support in the face of potentially oppressive political situations; moving beyond reliance on external care to develop personal and political assertiveness.
Of course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.
', u'post_id': 740, u'date': u'2016-09-18 15:28:27'}, {u'user_id': 3403, u'title': u'yes !', u'comment_id': 12813, u'content': u'Yes, I am submitting
Fingers crossed !
', u'post_id': 740, u'date': u'2016-09-13 08:11:19'}, {u'user_id': 4, u'title': u'Maybe we can help?', u'comment_id': 12336, u'content': u'I really like the idea of a mixed model. We are now in the middle of a crazy operation to find support for about 150 care-related initatives. Maybe you could be one of them?\xa0
\n\nInfo:\xa0https://edgeryders.eu/en/openandchange-coordination/your-openandchange-application-process
', u'post_id': 740, u'date': u'2016-09-12 23:22:43'}, {u'user_id': 3403, u'title': u'Hello Alberto,\n\nThank you for your comment.\n\nGroup therapy is ', u'comment_id': 11020, u'content': u"Hello Alberto,
\n\nThank you for your comment.
\n\nGroup therapy is a quite common part of\xa0 a therapy programm in clinical setting (psychiatric hospitals). What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope better with traumatic events in our lives and in the world. We need to talk about trauma and pain more openly. We need to adress trauma and pain more directly, not only in the setting of a psychotherapeutical process.
\n\nAs for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!
", u'post_id': 740, u'date': u'2016-09-12 16:51:25'}, {u'user_id': 4, u'title': u'The wandering therapist', u'comment_id': 7567, u'content': u'Hello and welcome, @ybe ! This is a suggestive image: a therapist driving her bus into the sunset, looking for traumatized people to help out.
\n\nI am curious as any previous attempts of dealing with trauma in groups. I know nothing about psychotherapy, but I do recall that this problem was met by army psychologists in wartimes. Too many traumatized soldiers, not enough therapists. Therapy had to be done in groups (and here is where Wilfred Bion\'s intellectual journey starts) . Has this stabilized into standard practice?
\n\nAs for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?\xa0
', u'post_id': 740, u'date': u'2016-09-12 15:45:30'}, {u'user_id': 2569, u'title': u'Interesting idea Patrick', u'comment_id': 23507, u'content': u'"grief is a form of disability..."
\n\nI think this is a very interesting suggestion\xa0Patrick, that may benefit from great insight.
\n\nI also read a very interesting acticle about how it is often harnessed by communities to help deliver change as well:
\n\n\n\n\nWell worth a read
', u'post_id': 694, u'date': u'2016-09-20 17:02:57'}, {u'user_id': 104, u'title': u'Reminds me of how people respond to death', u'comment_id': 19688, u'content': u'I found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability.
\n\nIn speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability...
\n\nAnyway, thank for posting.
', u'post_id': 694, u'date': u'2016-09-20 10:09:18'}, {u'user_id': 3331, u'title': u'ICF', u'comment_id': 13939, u'content': u'Are you aware of the huge international work on ICF?
\n\n\n', u'post_id': 694, u'date': u'2016-08-23 12:31:29'}, {u'user_id': 3265, u'title': u'Hi @Noemi,\n\nYes, I am working on the same ', u'comment_id': 11460, u'content': u'Hi @Noemi,
\n\nYes, I am working on the same project with @Moriel, @ChristineOehme and @Luise Kr\xf6ning. Thank you very much for your feedback. We will take a look at their project.
', u'post_id': 694, u'date': u'2016-06-01 22:12:04'}, {u'user_id': 3, u'title': u'Changing from the inside ', u'comment_id': 8596, u'content': u'@lujia hi! Are you working with @Moriel on this?
\n\nYou might want to get in touch with members\xa0in Milano for a slightly different problem and approach -\xa0they zoomed in on the\xa0problem\xa0of\xa0wheelchair mobility and how\xa0disabled\xa0people can\'t push their own wheelchairs and\xa0be on their own. Better designed\xa0wheelchairs\xa0would ideally increase one\'s autonomy and freedom to move. It takes\xa0out of the equation the need to be accompanied at any step,\xa0which is after all a practical reality identified by the group in discussions and something which can affect how others treat you. \xa0It would be interesting to study how perspective differ\xa0- what goes on in people\'s heads when they see someone helped versus\xa0when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here\'s the idea where you can get in touch for more info.
', u'post_id': 694, u'date': u'2016-06-01 06:01:03'}, {u'user_id': 393, u'title': u'tapping', u'comment_id': 25198, u'content': u'I haven\'t come across that exact technique - a quick google suggests it is a modified version of EFT suitable for people with more acute trauma.
\n\nWhat I have heard from colleagues [and here] is that these tapping techniques work, but mostly because the tapping helps to distract/reorient the system to allow the trauma to be released, rather than because it is a specifically effective sequence of acupuncture points.
\n\nThat said, acupuncture points are areas that initiate particularly high physiological responses, so if you are going to be tapping yourself, arguably you might as well do it on acupuncture points to get an even better effect. And doing a sequence of points in all the areas of the body will ensure that no forgotten area retains the tension of the trauma.
\n\nIn short - it\'s probably worth giving it a try!
', u'post_id': 671, u'date': u'2016-09-18 16:35:07'}, {u'user_id': 3403, u'title': u'traumatapping', u'comment_id': 24458, u'content': u'@steelweaver, as an acupuncturist, do you know this tapping technique: http://peacefulheart.se/trauma-tapping-technique and do you think it is effective?
', u'post_id': 671, u'date': u'2016-09-18 15:59:18'}, {u'user_id': 4, u'title': u'Stealth mode', u'comment_id': 22025, u'content': u'No, other\xa0examples of care services that rewire themselves so as to (1) establish themselves as "owned" by the community and (2) bypass stifling regulation.\xa0
', u'post_id': 671, u'date': u'2016-05-12 10:28:23'}, {u'user_id': 2470, u'title': u'Insight?', u'comment_id': 20523, u'content': u"I'm not familiar with the project and do not really immiedetly see what my contributon should be. References to previous insights on how private services\xa0are more customer oriented than public?
", u'post_id': 671, u'date': u'2016-05-12 10:18:54'}, {u'user_id': 3331, u'title': u'EBM', u'comment_id': 19479, u'content': u'Dear @steelweaver, I do appreciate your references, but\xa0cochrane reviews\xa0are better in supporting the statements. Personally I have proposed some studies but apparently \'scientific approach\' is disturbing the \'chi\'. However we surrender to a universal law \'effectiveness is the measure of truth\' \xa0and we have a moral obligation to strive for the most effective treatment (leave the measure of effectiveness open for now) regardless of our personal beliefs, hopes and dreams.\xa0
\n\nWhat I\'m getting at here is that OpenCare should also consider establish a serious approach with double scope: avoiding infiltration of quackery and protect us from accusations of quackery.\xa0
\n\n\xa0What I\'m asking the community for is to contribute with ideas of how to implement EBM in our approach, as in your clinic?
\n\nWhat I think we can offer each other within OpenCare is the solution to "can\'t afford to hire a medical research team", surely we have the skills in this comunity.\xa0
\n\nSo lets help each other. I\'ve started a cook book over here
', u'post_id': 671, u'date': u'2016-09-20 15:14:40'}, {u'user_id': 393, u'title': u'acupuncture evidence', u'comment_id': 19471, u'content': u'Hi @Rune,
\n\nTrue, acupuncture is largely regarded as \'alternative\' - at least in the West; it is integrated into mainstream healthcare in China and other East Asian countries, and increasingly in places like Israel and Australia. I would put it a bit differently - it has not been \'becoming\' evidence-based in the sense of people changing how they practice. It is more a case of practitioners, who have ample experience of the effectiveness of the treatments in their own practices, looking to find ways to produce acceptable evidence to back this up so it will be more widely accepted by the mainstream.
\n\nAs with all physical interventions, this is not easy! You can\'t really run a double-blind control study on a physical therapy where the patient can feel whether it\'s being done or not, and a lot of the resistance to accepting acupuncture involves either rejecting all the \'lesser\' forms of evidence for its effectiveness, or designing \'sham\' studies that don\'t really take into account how acupuncture works.
\n\nAll that said, there is still a lot of evidence for its effectiveness for a variety of conditions. The Acupuncture Now Foundation have an accessible summary here: https://acupuncturenowfoundation.org/wp-content/uploads/2016/05/ANFwhitepaper2016.pdf
\n\nOr you can look at their research page - https://acupuncturenowfoundation.org/doctors/studies/ - or at the factsheets on the BAcC website: http://www.acupuncture.org.uk/category/a-to-z-of-conditions/a-to-z-of-conditions.html
\n\nI have Chinese colleagues who like to point out that this is just the tip of the iceberg - there are literally thousands of positive studies from China [and Japan, and Taiwan, and South Korea, if you\'re worried about the quality of communist science] that have never been translated into English...
\n\nI don\'t have any evidence of the effectiveness of my own treatments specifically, though! I can\'t afford to hire a medical research team, so I\'m reliant on the already-existing body of evidence and theory.
@steelweaver, this is really interesting. Acupuncture has loong been considered alternative medicine. Lately it has become evidence based. Do you have objective evaluation of the effectiveness of your treatments?
', u'post_id': 671, u'date': u'2016-08-22 11:24:47'}, {u'user_id': 4, u'title': u'Amen to that', u'comment_id': 19066, u'content': u'Agree with most everything @Natalia_Skoczylas and @Noemi are saying. The only difference is that I do appreciate that Uber/Airbnb create some value for local communities, by giving some extra freedom to people on the ground. For example, say\xa0you notice that there is a long queue for taxis at your local airport on Friday nights.\xa0You can then in principle step in as an Uber driver and make yourself availabe for that time slot, if you need the money more than the time. It is a market clearing mechanism, but a clearing market is, in itself, a good thing. What\'s bad is a market underpinned by asymmetric power relationships. But we have that anyway: taxi drivers telling people "you can\'t work here, this is our turf" is an act of violence. It is no coincidence that most Uber drivers in Brussels are\xa0Arabs: plenty of unemployed/underemployed young Arabs in town, and\xa0Uber lowers the threshold for them to enter the business. Without it, driving for money is off limits for them. But you have all heard this before, many times.\xa0
', u'post_id': 671, u'date': u'2016-09-10 10:44:08'}, {u'user_id': 3, u'title': u'Non-profit non-regulated health providers difft from Uber ', u'comment_id': 19056, u'content': u'@Alberto, we should keep your line in mind and mull over it: not scaling as a solution to survivability!
\n\n@Natalia_Skoczylas my position is similar to yours: I cant argue in favor of\xa0"vulnerable" big\xa0companies\xa0as long as they do\xa0not give back to the community when they can afford to. Ok, they started by differentiation in their business model in that they are not a taxi company, they are a car sharing service. But de facto\xa0they operate in the same market\xa0except not playing by the same rules as everyone, and taking a route in which they dont make a claim on new and better rules. Or maybe I\'m missing that claim.\xa0To me, the difference between future clinics such as @steelweaver \'s or\xa0Helliniko-turned-big and services like UBER is that the former reshape markets to make it better for an overwhealming majority, while the latter just want to stay outside markets for a bigger margin. Yes, they made a contribution in their disruption - I see how bigger the service quality is\xa0on the local taxi market where I live and where UBER just arrived, but that\'s not enough when they can potentially take more from the community than what they give.
', u'post_id': 671, u'date': u'2016-09-09 18:25:00'}, {u'user_id': 137, u'title': u'In my opinion te cases against Uber and ', u'comment_id': 19048, u'content': u"In my opinion te cases against Uber and Airbnb are valid even if I love the ideas behind them. Uber is getting sued for not providing their drivers with essential support: health care, insurance, repair\xa0costs while being free to bring down the prices. And as Google is joining the race, prices will go down. Another problem with Uber is its hunger for monopolizing the markets around - which hopefully will be stopped as well, although this will happen most likely thanks to other giants.\xa0
\n\nAbout Airbnb, you are entitled to rent a spare room where you live - the case is against fake sharing, de facto homes and apartments that were emptied so the owners would make money on short term rentals. This changes the landscape of the city and has huge, negative effects.\xa0
\n\nprobably the difference between scaling and monopolizing markets is one of the criteria here. These startups lost the reasonable idea of scale and infringed territories. Hotels and taxi corporation will protect their share and lobby against these companies, which doesn't need to be good in results. But these battles amplified processes in the urban spaces which could have been happening more quietly before, and that's good. And made people think about sharing and new ways of the economy. Built trust.\xa0
\n\nI think the key here is not to let one giant to emerge, but to allow organic replicas to provide similar offers in their environments, without overarching the whole globe with a great huge fix. If the efforts remain decentralized, scattered, but also adapted to local needs and problems, I can't see a way in which this model would be bad (of course. pharmaceutical companies and other parties interested in ridiculing anything's that out of the system will try to fight it and there will be a need of great success stories that can be told to the people in order to change their attitudes towards alternative approaches to care. Maybe it's not even too late, herbal medicine didn't completely disappear...) or harmful. I believe there should be manuals and ways to ensure people providing help are capable of doing it, however, what kind of manuals and to what extent, I have yet no idea.\xa0
", u'post_id': 671, u'date': u'2016-08-31 14:45:00'}, {u'user_id': 4, u'title': u'Great discussion guys!', u'comment_id': 19025, u'content': u'@steelweaver, @Noemi, I think you are zeroing in on something important.\xa0
\n\nHere\'s what I\'m reading.
\n\nAll of which is pretty depressing, I must admit. Hope you guys can contradict me
link:\xa0Can we afford to neglect this issue?
', u'post_id': 671, u'date': u'2016-08-22 18:16:17'}, {u'user_id': 3, u'title': u'So some regulatory framework is needed..', u'comment_id': 18617, u'content': u'While building trust in the service while ofering affordability and humane treatment\xa0is definitely a plus, the questions remains and it\'s for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available? We have great insights, yet risk running completely unprotected. The more they grow effective or meet a growing demand, the more attention they draw, the more concurential they become, the more they risk being antagonised by systems on more-or-less valid concerns. Uber\xa0being exhibit A..\xa0
\n\n@markomanka maybe has more interesting insights as to minium criteria which can\xa0make\xa0health services like these legit from system\'s perspective.
', u'post_id': 671, u'date': u'2016-05-09 13:57:06'}, {u'user_id': 393, u'title': u'Stepping outside the commercial model', u'comment_id': 18202, u'content': u'Hi @Noemi,
\n\nWell, working on a donation basis was my nod to being a non-commercial entity, which (as far as I know) means the clinic is not subject to licensing - similarly to people who volunteer in hospices, addiction recovery centres etc.
\n\nI am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (or at least it was desirable before networked reputation economies became a possibility - who knows what alternative models might be possible now?).
\n\nOn the other hand, I was certainly struck by the degree to which stepping outside the commercial model of delivery freed me up to do things differently.
\n\nIt\'s also made it far easier to get \'buy-in\' from the community so that they think of it as something that belongs to them, that they can collaborate with. The terms of interaction defined by our habits of commercial consumption go deep, and having some way to differentiate yourself from it seems very important in encouraging people to thnk and act differently.
', u'post_id': 671, u'date': u'2016-05-07 10:52:16'}, {u'user_id': 3, u'title': u'Can you easily go unnnoticed then?', u'comment_id': 18017, u'content': u'Hi @steelweaver,
\n\nJust to thank you for the contribution and to say I\'m intrigued by what it means that you\'re operating while waiting for a license, is it dangerous or do you risk anything? Or is it more a matter of time.. and you will get it anyway, be in the books etc?
\n\nEver since we heard about the volunteers led clinic in suburban Athens and the potentially many similar ones, it makes you wonder what it is about these grey areas in between formality and informality. Maybe involving people who are not health professionals in the system definition is a requisite for the kind of services you mention - precisely because the ones from the system are too trapped in it to get out alone.
', u'post_id': 671, u'date': u'2016-04-30 19:54:23'}, {u'user_id': 393, u'title': u'yep', u'comment_id': 15329, u'content': u'Thanks, @Alberto. Couldn\'t agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.
\n\nBut as the era of individualised medicine gathers steam, this is something that all forms of healthcare are going to have to grapple with.
\n\n2 months is an extremely long time (2 weeks would be more usual). I won\'t bore you with the details, but essentially, acupuncturists are licensed at the local level in the UK alongside tattooists and body piercers (which have far greater risks of injury, blood-borne contamination, etc, and are, clearly, not any kind of healthcare) - and are thus entirely at the mercy of whatever inappropriate regulations the district council chooses to impose.
\n\nAs I said, the knock-on effects are common to any such grassroots community project - but I do think that there is a particular momentum that comes from the project delivering a treatment that directly makes people feel emotionally and physically better;
\n\nand, of course, the community clinic model is unique to acupuncture because you can\'t treat multiple patients at once with most other modalities!
', u'post_id': 671, u'date': u'2016-04-26 12:13:00'}, {u'user_id': 137, u'title': u"Yes, you're right. Although some of my dermatologists ", u'comment_id': 13333, u'content': u"Yes, you're right. Although some of my dermatologists I've seen plenty of times over years - they just kept on trying things on me, instead of looking for some other reasons why their treatment didn't work (probably they didn't address the issue at its core). Anyhow, then I have learned an interesting thing about prescribing people tests. It turns out in Poland each doctor is given a number of tests he can prescribe to people: blood, sugar, more sophisticated ones. BUT, if the doesn't spend them all, he gets PAID for each test he didn't give out. Anyway, it's just one of the pathologies of the system I've discovered - as my family is full of doctors, every time I open the discussion I am more and more stunned by how badly it was designed.\xa0
\n\nI am not enough of a sample I am afraid - I could only bring a couple of stories:)
", u'post_id': 671, u'date': u'2016-08-31 14:04:58'}, {u'user_id': 3331, u'title': u'ask you to try it out', u'comment_id': 13306, u'content': u'@Natalia Skoczylas, as of the hypothesis of 30% errors in my comment, I understand (and know) the \'try it out\' stuff. I\'ts ok I think. The problem is that as it is extremely valuable information gets lost. Consider two cases:
\n\nA: It worked \xa0 \xa0 \xa0 \xa0 \xa0 \xa0B: It did\'nt work.
\n\nWas it due to chance or attributed to treatment?
\n\nIf everybody reported the result systematically it would be easy to identify best treatment. Unfortunately this info gets lost and nobody learns. This leaves it to the bias of where money gets invested for clinical trials. Another reason for a \xa0review system.\xa0
', u'post_id': 671, u'date': u'2016-08-30 21:15:14'}, {u'user_id': 3, u'title': u'Also: studying interventions for increased empathy', u'comment_id': 13150, u'content': u'I would be interested to see if some interventions can trigger more emphatetic treatments and how that affects patient\xa0wellbeing. Things like "Hello my name is..." campaign for practitioners to\xa0be more humane, or the other day I was reading about inserting empathy in the medical studies -\xa0"What Medical Residents Learn from Art Museums". \xa0These things\xa0don\'t feel too sophisticated things to do for apparently very high returns. We all seem to\xa0agree that "more empathetic" is better for patients wellbeing, not just satisfaction which is more obvious.\xa0
', u'post_id': 671, u'date': u'2016-08-31 08:47:50'}, {u'user_id': 4, u'title': u'Great idea', u'comment_id': 13062, u'content': u'... and great discussion. Something to think about for the second year of OpenCare. A collaborative map of waiting vs. being given health care and empathy? Nice artifact.
\n\nThe idea of "rules instead of Hippocratic oath => bad" is intuitively very appealing. I think @teirdes has some structured thoughs and experience.\xa0
', u'post_id': 671, u'date': u'2016-08-31 08:24:28'}, {u'user_id': 3331, u'title': u'Extremely interesting', u'comment_id': 12857, u'content': u'Hmm, @Natalia Skoczylas, I\'m impressed about your international experience. It could be extremely interesting analyzing those 8 countries, comparing them with other peoples experiences (I\'ve only lived in DK,UK,NL & IT). With the free movement of labour and free choice of public health provider (HCP)\xa0it could be interesting to have a sort of \'google maps\' scoring system of satisfaction. People could score the on a couple of dimensions ....is that networking stuff @Alberto?
', u'post_id': 671, u'date': u'2016-08-30 21:04:51'}, {u'user_id': 137, u'title': u"@Rune, I've lived in 8 countries in the ", u'comment_id': 12427, u'content': u'@Rune, I\'ve lived in 8 countries in the past few years, mostly in Europe. I\'ve been to doctors in all of them. And there were no computers to assist the doctors, mostly they had a person to do the written documentation. Which didn\'t change the fact that even if they had theoretically more time to spend on approaching me as a patient, they would mostly limit their help to examination and writing a prescription. Rarely they bother talking to me and try to figure out the reasons for the problem. It happened a lot with dermatologists, who basically just give you a prescription for some external treatment, very expensive, and ask you to try it out. None of their recommendations ever helped me.\xa0
\n\nLast times were absurd to an extent that the doctor wouldn\'t even tell me what he thinks is wrong until I asked - and then the questions about medication followed, with an ironic response: oh, so you\'re interested in drugs?\xa0
\n\nI don\'t know what these doctors are actually frustrated with. I guess an inhumane amount of patients to see every day might be one of the reasons. Still, I would suggest there is a huge lack of empathy training during their studies and work, and maybe this is why they\'re incapable of approaching their patients in a more personal, compassionate manner.\xa0
', u'post_id': 671, u'date': u'2016-08-30 17:55:50'}, {u'user_id': 3331, u'title': u'No Humane ghost in the machine', u'comment_id': 11945, u'content': u'Hello @steelweaver and @Alberto, the reflection about \u2018good doctors\u2019 and \u2018systems\u2019 triggered me to exemplification.
\n\nWe often simplistic talks about good doctors. They have suffered the longest & toughest study and taken the Hippocratic oath. Only good people invest their intelligence and life so \u2018insanely\u2019, instead of pursuing personal wealth. Lately I\u2019ve been several times patient(ly) at (4) hospitals.
\n\n95 % of the time you wait, pay tickets, try to get the right documents and wait for someone to (re)-type (using only the indexfinger) your anagraphical details (already electronically registered).
\n\n5 % of the time a healthcare professional is actually seeing you. That time is again divided into
\n\n20% waiting for the doctor to read your documentation and check that you paid the ticket etc.
\n\n10% the actual examination/intervention
\n\n60% waiting for the DOCTOR to TYPE (with maybe 2 index fingers) your diagnosis/report in the secret language: docterish
\n\n10% where (s)he explain/discuss with you.
\n\n0.5% (10%*5%) of the time you feel some human treatment!!!
\n\n99.5% (100%-0.5%) you are just frustrated waiting for your final hour.
\n\nUS ALL for electing the people continuing this process of alienation of the patient and healthcare providers. \xa0\xa0
Hello @steelweaver, welcome back! It\'s been a while.\xa0
\n\nI am not sure about acupuncture as such. On the other hand, I am very intrigued by\xa0what your model adds to acupuncture. You add:
\n\nIt seems to me these are tenets of anything we can rightfully\xa0call open care.\xa0
\n\nAnother interesting data point you have found is about licensing and regulation. Is two months a long time to get a license in the UK? If so, what do you think is going on, and how could it be fixed?
\n\n(I don\'t buy knock-on effects really, because you\'d have them also if you administered any other treatment than acupuncture (as well as not delivered in the patient\'s home).\xa0
', u'post_id': 671, u'date': u'2016-04-25 21:50:03'}, {u'user_id': 3416, u'title': u'Undisclosed content ', u'comment_id': 19759, u'content': u'Undisclosed content', u'post_id': 506, u'date': u'2016-09-20 15:11:29'}, {u'user_id': 2201, u'title': u'Hey @Noemi, this is just something cultural that ', u'comment_id': 18382, u'content': u'Hey @Noemi, this is just something cultural that people have always been doing in\xa0Morocco, it\'s about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is\xa0not allowed to cook in public parks any more even though they use\xa0a traditional\xa0portable clay pot for coal/making fire and there is no hasard in cooking open air in such way...
\n\nWhen people go to the countryside for weekends/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.\xa0
', u'post_id': 506, u'date': u'2016-06-28 12:17:19'}, {u'user_id': 3, u'title': u'Do you see diversity there?', u'comment_id': 17460, u'content': u'Heya, is this about the culture of going out or more of a policy or\xa0project for bringing people together?
', u'post_id': 506, u'date': u'2016-06-27 11:36:17'}, {u'user_id': 2201, u'title': u'I can only emphasize the importance of shared ', u'comment_id': 15186, u'content': u"I can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco\xa0where people gather in parks in the evenings and bring their tagine out to cook\xa0and mingle while enjoying the cool breeze from the Atlas mountains...
", u'post_id': 506, u'date': u'2016-06-27 09:15:37'}, {u'user_id': 3, u'title': u'Documenting your design process..', u'comment_id': 9932, u'content': u".. looks like a very thorough work!
\n\nIt's incredible that none of these people seems to be cooks, and yet they are so knowledgeable about what cooking brings to one's life - and how that's a part of living a good, peaceful life. \xa0
", u'post_id': 506, u'date': u'2016-06-09 05:48:07'}, {u'user_id': 3382, u'title': u'Thanks', u'comment_id': 24763, u'content': u'Thank you @Rune!\xa0The article on the polio is quite an interesting read.
', u'post_id': 725, u'date': u'2016-09-20 14:46:01'}, {u'user_id': 3331, u'title': u'Milestones that changes history', u'comment_id': 24291, u'content': u'This looks like one of those really simple things that improves the world. \xa0Astonishing little things.
\n\nLike this one:\xa0"ERADICATING POLIO FROM THE SURFACE OF THE EARTH". I\'ll donate now, everybody please do the same now.
\n\nAfter UNICEF has ended polio, could they be using your project?
', u'post_id': 725, u'date': u'2016-09-05 12:57:26'}, {u'user_id': 3382, u'title': u'Thanks!', u'comment_id': 22191, u'content': u'So this is a cheap herbal remedy. It grows really well in these tropical regions, and quite fast too. So it does not take up a lot of cost in production, except for its processing which could cost quite a bit. But this advantage allows us to produce en masse and a cost efficient rate, so we are able to give it out to the public at incredibly cheap prices - cheap enough to have daily supplies\xa0affordable\xa0by just anyone. Since these are teas in tea bags, it makes it even better.
', u'post_id': 725, u'date': u'2016-09-05 08:41:06'}, {u'user_id': 3362, u'title': u'Nice going!', u'comment_id': 20937, u'content': u"Hello Ivan, what a great research project you have going on! If you can push the research further and pour it into some kind of organisation for distribution, I bet it would have a large impact.
\n\nHow do you think you could make\xa0the tea reach the people who need it most but can't afford it, and avoid it only reaching the happy few (like\xa0the often prosperous superfood buyers as Noemi mentioned) who don't really\xa0need it but can afford it?
", u'post_id': 725, u'date': u'2016-09-03 08:51:14'}, {u'user_id': 3382, u'title': u'Thanks, Noemi!', u'comment_id': 17736, u'content': u'Hopefully! It\'s an interesting area to look into.
I learned something new today, and it didn't take many clicks on the Internet to see that moringa is being called a superfood. Hopefully you'll break new ground with herbal remedies as affordable treatment, and not just in Africa!
", u'post_id': 725, u'date': u'2016-09-02 06:20:44'}, {u'user_id': 3382, u'title': u'True, I agree. Thanks, @Alberto ', u'comment_id': 12808, u'content': u'True, I agree. Thanks, @Alberto
Even better, @Ivan_Ezeigbo ! Well, if human diabetics draw benefits from drinking moringa tea, this is more powerful evidence than rats benefiting from being injected moringa juice. When you present your case, I would recommend saying this up front.\xa0
', u'post_id': 725, u'date': u'2016-08-28 15:23:17'}, {u'user_id': 3382, u'title': u'Thanks!', u'comment_id': 11034, u'content': u'Thank you @Alberto, for commenting and reading.\xa0No, the rats did not take the tea. We injected the bioactive agents (the contents) of the leaves into the rats. Then we observed them with a glucometer. And yes, I think sipping the moringa tea would provide blood regulatory function. Because during digestion, this enters from the gut into the bloodstream, and that\'s where it serves this function. I have already conducted experiments on this with diabetic humans too (who take the tea), and indeed the moringa tea has very powerful blood regulatory effect.
', u'post_id': 725, u'date': u'2016-08-28 07:32:16'}, {u'user_id': 4, u'title': u'Great work! ', u'comment_id': 7535, u'content': u'Wow, @Ivan95 . At 20 years of age, you are already a researcher and an entrepreneur. Well done.\xa0
\n\nQuestion: how did you treat the rats? I suppose you did not give them tea...\xa0do you think sipping moringa tea will provide glucose regulation to the organism of the tea-drinker?\xa0
', u'post_id': 725, u'date': u'2016-08-27 10:15:12'}, {u'user_id': 3, u'title': u'Can you clarify?', u'comment_id': 6668, u'content': u'@sucreblue it is lovely to read you, welcome to the community, and to OPENandChange bid - I saw you are formally onboard.
\n\nFrom the description of the service being peer-led I understand that the people doing the screenings, the caregivers are trained citizens? Or do they have medical background? I\'m asking because the first makes for a model we keep seeing and others are advocating for similar ones - where building alternatives to systems means training ourselves into becoming carers. Because the systems are understaffed or too rigid to provide\xa0low cost access to treatments with low overhead.
\n\nYou should definitely go in and meet the people at @concrn training community dispatchers for the homeless, or at @MAZI fighiting depression together. Or closer to home - how building cheap eco-coolers from plastic bottles helps people cope with heat.\xa0They are all community led solutions.
', u'post_id': 755, u'date': u'2016-09-20 09:13:09'}, {u'user_id': 3400, u'title': u'A key support to dive into the knowledge / collaborative economy', u'comment_id': 6522, u'content': u'Sensorica has had a major impact on our initiative, not only by having engineers and passionate jack-of-all-trade help us create an open source breathing device, but also by showcasing a sustainable and transparent model for redistributing raised fund, which we adopted. We are looking forward to this adventure.
', u'post_id': 538, u'date': u'2016-09-19 22:11:44'}, {u'user_id': 4, u'title': u'Informal for the win', u'comment_id': 23189, u'content': u'You are probably not asking me, @Luisa (what do I know about the Parks and Open Spaces Department in Berlin, apart from the fact that its nam is probably one really long German word?). But if you can pull it off, an informal, safe discussion between the authorities and the people is very valuable. If you have a courageous politician or senior public officer at hand, you could ask her to come along as facilitator; the Parks people would feel authorized to attend\xa0because she is there, and they could have a chat off the record. But you need the right person.\xa0
', u'post_id': 683, u'date': u'2016-09-19 20:43:45'}, {u'user_id': 3402, u'title': u'What about municipality?', u'comment_id': 22447, u'content': u'@Louisa good luck with your idea!\xa0\xa0I\'ve had\xa0something like this in mind\xa0but I didn\'t find enough funs for this\xa0Urban Cooking. You can have a formal green light if the municipality (or whatever) agrees and then you can organise the routine part like informal just for the atmosphere. In Greece we have strict rules (only in papers) about public spaces but every municipality has special Regulatory Decisions. The municipality services inform about the legality and in cooperation with the councilors or/and the citizens apply the final idea. Did you ask the topical authorities about that?
\n\n\xa0
', u'post_id': 683, u'date': u'2016-09-19 19:45:56'}, {u'user_id': 3249, u'title': u'Undisclosed content ', u'comment_id': 20863, u'content': u'Undisclosed content', u'post_id': 683, u'date': u'2016-06-02 14:34:58'}, {u'user_id': 3, u'title': u'Unless you turn it into a festival..', u'comment_id': 18648, u'content': u"Where I come from a\xa0funny thing is happening: everyone loves festivals, especially during this time of the year, May-June before students are out of town for holidays. We had very strict regulations about sitting on the grass\xa0in our central park, you know that kind of green space where you really want to spend time in nature but can't because it's too cosmeticized? Nowadays there's Jazz in the Park and the Big Hammock Day and these kinds of events which start as one offs but then create a demand and become a habit. What they have in common is that they start with a big push.
", u'post_id': 683, u'date': u'2016-05-28 09:28:47'}, {u'user_id': 3293, u'title': u'NO BBQ in Brussels :(', u'comment_id': 18277, u'content': u'Whaaa that would be a dream, but in Brussels for \'safety reasons\' we can\'t BBQ in any park in the region, i\'m really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don\'t have any open air pool in Brussels either
Seriously? In Italy BBQs in the park are big \u2013 well, in Milano at least, now that I think of it I never saw it done in Emilia Romagna. I think the fad was started by the Peruvian community, who moved in in force. There are even web pages on "the best parks to do BBQ in Milan", or Rome, or whatever:\xa0http://www.viaggiamo.it/parchi-dove-fare-grigliate-a-milano/
\n\nThis is fairly typical:\xa0
\n\n', u'post_id': 683, u'date': u'2016-05-26 09:43:29'}, {u'user_id': 3293, u'title': u'Wonderful project', u'comment_id': 14420, u'content': u"I love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.\xa0
\n\nProblem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!\xa0
\n\nGood luck with the project and keep us up to date!
", u'post_id': 683, u'date': u'2016-05-26 08:50:22'}, {u'user_id': 4, u'title': u'Excellent question! ', u'comment_id': 6539, u'content': u'Well done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs / traditions).\xa0
\n\nIt may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages.\xa0I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety,\xa0hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds ("we have to comply with all these expensive regulations, whereas these guys just go gray economy").\xa0
\n\nIn passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue\xa0capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.\xa0
\n\nSo, I guess a first step towards\xa0A Taste of Home\xa0is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?
', u'post_id': 683, u'date': u'2016-05-23 09:13:00'}, {u'user_id': 3, u'title': u'Ok, just another day at work.', u'comment_id': 9449, u'content': u'So your work/office\xa0space is a prison,\xa0members of your team are inmates, and it\'s not a one off because\xa0you are setting up a proper organisation to turn this into something sustainable,\xa0do I get it right?
\n\nSo many fiction-like\xa0cultural references come to mind Really inspiring, and from reallife examples it\xa0reminds\xa0of the Brazilian Wasteland and how wasted\xa0human potential can be turned into art.
If you are\xa0able to spin this into a social economy /\xa0professional re-insertion kind of venture where you make a case about skill training, you might be able to access resources easier\xa0than under artistic education or creative industry.. especially if\xa0Greece has some subsidies/ funding left for that field.\xa0
\n\nAlso, is there anywhere online where the museum works can be seen?
', u'post_id': 744, u'date': u'2016-09-16 21:51:10'}, {u'user_id': 116, u'title': u'social ecosystem', u'comment_id': 15881, u'content': u'my two cents to a great thinker...
\n\nby profession I\xa0deal both with institutions and corporations and, as a citizen, with society and all the issues. each of this world have needs and questions but also resources but, despite rhetoric or good will, they just negotiate on few elements (budgets, regulations..) as counterparts. 2 by 2. if we mange to make the "system" work differently we would easily gain - low costs - a much better impact and effect ..helping the social brain to work in a more complex way, which is not harder.
\n\nwith this open care project we try to do something like that, making several forces co-operate and\u2026 if I \xa0can sponsor a bit my part...having housing at the center (also with a good platform) can aggregate actions towards families networks as the center of policies, buildings, peer to peer care, local micro welfare we can enhance a social innovation
', u'post_id': 497, u'date': u'2016-09-16 11:09:49'}, {u'user_id': 4, u'title': u'OpenCare as a Wikipedia-type system', u'comment_id': 7955, u'content': u'Very interesting, @Ezio_Manzini! Here\'s the money quote:\xa0
\n\nIn principle, everybody can care for someone else [...]\xa0in different forms [...], but all of them require attention. Given that attention is a limited resource [...] care [...]\xa0is [also]\xa0a diffuse but limited resource.\xa0
\n\nThis vision of care activities reminds me of Wikipedia. Wikipedia is quite a coherent object. It\'s also very decentralized\xa0in scope and\xa0authorship; and tasks are allocated across contributors by self-selection, without central control.
\n\nContributors are extremely diverse in their interests, experience, and in the time they contribute to Wikipedia. Some Wikipedians, like me, might fix a typos or repair a broken link here or there, and only very occasionally enter a factual information. Others take full stewardship for entries\xa0that are important to them. Others, still, make tens of edits a day. A lot of Wikipedia\'s advantage comes from the fact that it can use effectively\xa0small\xa0contributions.\xa0
\n\nOpen care might be the same. A mature open care ecosystem, I propose, is one where the natural human impulse to care and help can be easily translated into a contribution. One, in other words, where, if you can only contribute 30 minutes, you can, and your contribution will make a small, but tangible difference. Works?
', u'post_id': 497, u'date': u'2016-04-25 13:05:25'}, {u'user_id': 3, u'title': u'How can we help?', u'comment_id': 8167, u'content': u'Hi @KANNABIO, welcome on board! I know hemp production is back and on the rise in Romania too,\xa0after prohibitive regulations following the fall of communism. As far as I know it is somewhat subsidized too.
\n\nHave you attended the OPENandChange workshop in Thessaloniki? With Edgeryders we\xa0are trying\xa0to gather tens of projects working on community care, broadly understood, to apply for\xa0funding.\xa0If you\'re interested to be part of this, we are building partnerships until Sept 20th: http://openandchange.care
\n\nIf there\'s anything else we can do to help your initiative, let us know!
', u'post_id': 742, u'date': u'2016-09-14 10:35:00'}, {u'user_id': 3393, u'title': u'Undisclosed content ', u'comment_id': 15112, u'content': u'Undisclosed content', u'post_id': 733, u'date': u'2016-09-14 10:19:53'}, {u'user_id': 3, u'title': u'Activities and tools you use in and outside schools', u'comment_id': 9342, u'content': u'Nice to meet you Vivian at\xa0@T\xf3pio, and thanks for showing these beautiful pictures! I suggest we show them when giving your project a shout in the network.
\n\nYou mention various educational tools for \u201cplacemaking\u201d.\xa0Do\xa0all your activities in the project involve public art of some sorts? Or do\xa0the kids\xa0learn other ways of\xa0engaging with\xa0the landscape?\xa0
', u'post_id': 733, u'date': u'2016-09-05 13:19:15'}, {u'user_id': 3, u'title': u'Ah, I see', u'comment_id': 17366, u'content': u'After all, choosing to make an investment in a grant application is different from making a sale, and requires different resource allocation and a strech\xa0anyhow - so of course choices at each time\xa0matter whether or not you are looking to position yourself or not.
', u'post_id': 530, u'date': u'2016-09-14 08:36:20'}, {u'user_id': 3362, u'title': u'Perhaps I phrased it wrong', u'comment_id': 15018, u'content': u'Hey Noemi! Thanks for your reply. We don\'t feel the need to position ourselves so clearly. To the contrary: we would like to cooperate with as many\xa0diverse\xa0actors as possible. Being anti anything is what we try to avoid. We\'d rather build something better together than criticize the old.
\n\nHowever, I\'ve noticed that in our field, making choices of who you work with and what you do, positions yourself clearly on\xa0a polarized spectrum no matter what. It\'s not always the case surely, but something that is there nevertheless.
\n\nThanks for sharing your experience. You\'re right; if what we do is in allignment with the values then the results will speak for themselves. This dilemma of choosing may well just be fear of shutting certain doors. Other doors will open and as long as our moral compass works, we\'ll get to where we want to be\xa0
Hey @WinniePoncelet! The fact that you could set up an education program in addition to your biohack space says a lot with respect to how open you keep your initiative. With questioning sources of funding, why do you guys feel the need to position yourselves so clearly? Do you have to choose how much anti something like government you are?\xa0Have you had opportunities to work with big biotech and passed?\xa0I\'m\xa0curious because it looks like\xa0hacker values are there\xa0from ReaGent inception - openness, freedom, passion.. so even if the model changes or mixes government funds with revenues through lab\xa0membership or\xa0classes you will still be operating under those things.\xa0
\n\nWith Edgeryders we had always had\xa0some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It\'s somewhat natural, as long as the work is aligned with our mission\xa0and speaks for itself.
\n\nOr:\xa0Is bioengineering these days\xa0\xa0so controversial that you need to be firm about what you are willing / not willing to do and who you\'re doing it for?\xa0
\n\nI would recommend you read a short piece about selling as a moral act by @lasindias and invite @Juanjo_Pina who is experienced in activist market production\xa0to give a piece of advice. In the past they were asking if the market is\xa0the "ultimate alternative to the enclosure of fresh ideas into the dependence of public money or a way for converting activist into established business people"?
', u'post_id': 530, u'date': u'2016-09-12 13:43:43'}, {u'user_id': 3, u'title': u'Tweets: text broken down + favs', u'comment_id': 23802, u'content': u'Welcome to #OPENandChange Care: An invitation to a\xa0shared 100 mill$\xa0bid to fix health and social care.
\n\n#OPENandChange: is it here? is it now? how does it affect me? Tune in for 1hr and tweet it\xa0to meet the future.\xa0
\n\nUse #openandchange to join a massive online live conversation taking place now and led by @edgeryders community members
\n\n.@macfound has decided to deliver give a mighty push to fixing the world\u2019s most hairy, unfixable problems -\xa0#100andChange !\xa0\xa0#openandchange
\n\n.@edgeryders and an interconnected web of practitioners from all over are responding with one proposal: http://openandchange.care\xa0#100andChange
\n\n#OPENandChange aims to\xa0PROVIDE PARTICIPATORY, OPEN, SAFE AND ACCOUNTABLE HEALTH AND SOCIAL CARE FOR ALL\xa0#100andChange\xa0\xa0
\n\n...[add teasing\xa0questions here]
\n\nDid you know\xa0per capita health care expenditure grows much faster than GDP? Health systems everywhere are under strain\xa0https://edgeryders.eu/sites/default/files/user-Alberto/Health_care_expenditure.gif #OPENandChange
\n\n.@edgeryders @OpenInsulin @concrn @op3ncare @VeloM2Bxl @nextlearning are taking on the challenge of fixing care fully on! #OPENandChange #100andChange
\n\nWe do it by engaging with projects we know and\xa0dont yet know. This is an offer for partnering up, you\'re in time!\xa0http://OpenandChange.care\xa0#OPEandChange\xa0
\n\nOh. And we will break the competitive logic of grant\xa0funding in the meantime\xa0buff.ly/2cxjwUd #OPENandChange #100andChange
\n\nWe think we will win. Why? #openandchange #100andChange
\n\nWhy\xa0#OPENandchange?\xa0Funding one organisation means\xa0empowering a small group at the top. How about a network of orgs and\xa0movements?\xa0#100andChange
\n\nWhy #OPENandChange?\xa0Diversity trumps ability:\xa0large swarm of initiatives will be vastly more diverse than an organisation\xa0#100andChange
\n\nWhy #OPENandChange?\xa0Decentralized networks learn fast because they rely on knowledge sharing and documentation #100andChange
\n\nWhy #OPENandChange? Sociality in access to knowledge and teaching produces better technology than individual smarts\xa0#100andChange
\n\nIn Edgeryders alone\xa0we have 5,300 documented\xa0sharing knowledge relationships. Advanced analytics enable meaningful data extraction\xa0#openandchange #100andChange
\n\nWe are already present and mobilized\xa0in over 30 countries\xa0#openandchange #100andChange
\n\nWhy is fixing broken social and health-care systems a task for a massive no of people and projects?\xa0#openandchange #100andChange
\n\nIt is where we are all experts:\xa0almost every human has been, at some point, both a care giver and receiver\xa0#openandchange #100andChange
\n\nFor #100andChange competition we are not proposing new ideas: Inspiring projects are already showing that communities are able to deliver care. Yet they are struggling\xa0#openandchange
\n\nNow we will introduce stories and invite you to connect directly with protagonists. We are one click away and will be so for #OPENandChange #100andChange
\n\n...[fav tweets about projects here - suggest being explicit about location so that we show how worldly we are!
\n\nOpen\xa0Insulin\xa0project!\xa0#3Dprinter\xa0#proteins\xa0#biohacking\xa0#diabetes\xa0#solution\xa0#OPENandChange\xa0http://buff.ly/2bQhUUS\xa0https://t.co/xjVGNALo93
\n\nCalais\xa0Jungle!\xa0#diy\xa0#Dunkirk\xa0#volunteers\xa0#refugees\xa0#OPENandChange\xa0http://buff.ly/2cwwlKVhttps://t.co/DzbvuHHrJh
\n\nDoucheFLUX in Brussels | This simple thing will fix once and for all problem with access to showers http://bit.ly/2cnhnHu\xa0#OPENandChange\xa0#100andChange
\n\n...
\n\n[maybe one person can tweet these one hour\xa0in advance?]
\n\n@concrn are\xa0joining #OPENandChange and we\'d invite them to tweet why?
\n\n@Prinzess are joining\xa0#OPENandChange. Tell us your story and why?
\n\n...
\n\nHow is #OPENandChange going to tie together\xa0these\xa0crazy weird wonderful approaches? #100andChange
\n\nSince beginning 2016 we have done Step 1:\xa0SENSING what is out there doing ambitious work on delivering better care #openandchange #100andChange
\n\nEnding 2016 we are moving to Step 2: SENSE-MAKING through large ethnographic and #SNA study with @op3ncare #OPENandChange\xa0
\n\nBy winning #100andChange competition we want to move a level up: SCALING to help projects advance through collaboration\xa0#openandchange #100andChange
\n\nTo show what we preach we are making the proposal draft for @Macfound available and as open as it gets\xa0buff.ly/2chVO9O #OPENandChange
\n\nThanks to @@@@@@@@@
\n\nThanks to @@@@@@@@@@
', u'post_id': 5860, u'date': u'2016-09-13 11:42:25'}, {u'user_id': 3, u'title': u'Taken up 1 and 2', u'comment_id': 21917, u'content': u"I can also do 3 and 4 later in the week once more tweets are gathered.
\n\nThe chop and clicktotweet\xa0tools are great,\xa0you don't know how much I've looked to add Tweet this buttons for past events and didn't find a tool or quick code!
\n\nThe problem with the chat room is that it doesn't seem to collect all tweets, update fast enough and show RTs. Let a few of us use it these days to test it.
", u'post_id': 5860, u'date': u'2016-09-13 11:50:47'}, {u'user_id': 8, u'title': u'#3 Preparations broken down into individual tasks', u'comment_id': 20258, u'content': u'[Everyone] Choose/prepare our a\xa0longer form text that tells the story of what we are doing and why\xa0(e.g. blogposts).\xa0Break down the longer story texts into a number of tweets using a tool called\xa0little porkchop\xa0http://pork.io/. Copy paste them into a comment on this event page.
[\xa0Everyone] Do a search for #openandchange tweets. Pick the best ones. Copy paste them into a comment on this event page.
[Site Admins] Copy paste tweets from the comments into the \xa0description of this event above.
[Site Admins]\xa0Use http://clicktweet.com\xa0\xa0to produce "tweet this" buttons for each one and edit content of the page above into simple instructions and a series of quotes in this format:
"Twitter is like the lunch meeting with potential clients before you do the pitch. [Tweet this]
\n\n5.\xa0[Workshop leaders]\xa0Ask people to translate/remix some of the tweets into their languages. Especially the storytelling ones!
\n\n6. [Site admins]\xa0Embed tweetchat interface on this page if possible.\xa0
\n\nWhat do you think @Noemi, \xa0@Yannick, @Pavlos , @Natalia_Skoczylas , @jahn ?
', u'post_id': 5860, u'date': u'2016-09-13 08:56:00'}, {u'user_id': 8, u'title': u'Tool #2 A Tweetchat room', u'comment_id': 14744, u'content': u'http://tweetchat.com/room/openandchange
\n\nIt solves the issue that it\'s difficult to follow a hashtag while also actively participating in the conversation. With the usual twitter interface you need to have two tabs up and switch between them all the time.
\n\n\n\nTweetchat is a better interface for doing it:
\n\n', u'post_id': 5860, u'date': u'2016-09-12 20:52:11'}, {u'user_id': 8, u'title': u'Testing different tools to do this', u'comment_id': 7629, u'content': u'First up: Click to tweet\xa0https://clicktotweet.com
\n\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http://ctt.ec/k2U3d+
\n\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http://openandchange.care
\n\nhttp://ctt.ec/T8c9f+" src="http://clicktotweet.com/img/tweet-graphic-trans.png">
I think a basic income for everyone would be a good start to an alternative economy. It would tackle the fear of not having enough. Thus, everyone of us could contribute freely to society providing things and services we\'re good at. For me (traumatherapist on wheels) it would be a perfect solution : be able to work / to give to the world without having to think about \'will I earn enough mony doing so?\'
\n\nIn Finland, a basic income experiment is on its way - I am very curious what the outcome will be, and, eventually, how this wil change economy and society!
', u'post_id': 674, u'date': u'2016-09-13 07:12:06'}, {u'user_id': 3, u'title': u'The how is simple..', u'comment_id': 26946, u'content': u'Food waste is largely about food that doesn\'t even end up in your fridge - it gets wasted before that. See example\xa0of supermarkets throwing away perfectly good food\xa0as a very common one.\xa0
', u'post_id': 674, u'date': u'2016-05-02 10:27:00'}, {u'user_id': 2095, u'title': u"Egypt's poor a living on donations - Gift and share economy. ", u'comment_id': 26016, u'content': u"Somewhere people were calling for money to buy food to be distributed on poor people during the Ramadan. I can't see how do you waste food. Do you cook food, eat and through the remaining away instead of storing it in the fridge for next day?
", u'post_id': 674, u'date': u'2016-05-01 15:01:44'}, {u'user_id': 2095, u'title': u'Experimenting Alternative Economics in Cairo, Egypt', u'comment_id': 24581, u'content': u'I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem.
\n\nI basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend I am interested in your initiative. I can open another discussion to get ideas for my event.
What are the tools known as alternatives to the current economic system?
\n\nExamples from around the globe?
\n\nWhat should I be experimenting and spreading awareness through practice?
\n\nHow?
\n\nI feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc.
\n\nFinally what Oasis Game are you talking about?
\n\nI am in.
\n\nDina
', u'post_id': 674, u'date': u'2016-05-01 14:51:21'}, {u'user_id': 3, u'title': u'Good attitude to start with..', u'comment_id': 21417, u'content': u'Like @Carolina, I am interested, mostly in the traveling tour.
\n\n@Noelito pointed me years ago to a project by European Alternatives called TransEuropa Caravans where a group would go from place to place to meet initiatives and work out storytelling formats for connecting them. See this video as example:
\n\n\n\nThis wasn\'t moneyless though, and probably costs a lot of time and work. and only as a starting and learning point.
\n\nWe tried network building last year in Bucharest with a project called Futurespotters -wasn\'t food related but it was also about getting people who are very much aligned in values and agree on a lot of things that need to be solved, to meet each other and collaborate. But then a lot of other things are needed to make a network be self-supporting as you say (not sure if it can though), I don\'t even know where to start - leadership, vision, headspace to get out of your own bubble and hyper localized projects -there are so many great initiatives out there doing good. Someone once said to me that they\'re actually meant to be small, informal, cheap, and operating at any other scale would ruin it.
\n\nThis said, food sharing and looking at reducing waste sounds like it\'s part of the future, I dont see anyone here disagreeing, so you\'re on to something..!
', u'post_id': 674, u'date': u'2016-04-30 19:05:00'}, {u'user_id': 3131, u'title': u'Undisclosed content ', u'comment_id': 16090, u'content': u'Undisclosed content', u'post_id': 674, u'date': u'2016-04-28 05:54:35'}, {u'user_id': 4, u'title': u'Foodsharing ', u'comment_id': 9428, u'content': u'The Foodsharing idea (https://project.yunity.org/about_foodsharing in English) just makes so much sense.\xa0
\n\nI am not completely sure we can classify it as "care", though. But perhaps it\'s not even \xa0that important.\xa0
\n\n@Paul_Free, I know there are plans of community (vegetable)\xa0gardening as part of the city of Galway\'s bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?\xa0
', u'post_id': 674, u'date': u'2016-04-27 16:51:02'}, {u'user_id': 3367, u'title': u'Conclusions for practice applications', u'comment_id': 14716, u'content': u"Really curious to\xa0know more about what conclusions you come to\xa0doing these experiments. We have a space where\xa0we cook\xa0weekly dinners for up to 40 people, but we have a relatively full functioning kitchen. We've talked about how we could take our skills of cooking for large groups into situations, such as occupations,\xa0blockade/encampments\xa0 or the street and do the same with limited equipment most efficently. Have you thought about creating something like a sort of toolkit with your findings about how to best cook in the street, recipes that you have discovered work well with these limitations, etc? Would be really great. Look forward to seeing where this goes.
", u'post_id': 696, u'date': u'2016-09-12 17:49:36'}, {u'user_id': 3339, u'title': u'Well done!', u'comment_id': 7598, u'content': u'Hello! I really like the fact that people are getting involved into this kind of initiative, especially because of the diversity (of people) promoted. I encourage you to ask for as more and diverse feedback as possible and try to engage as many different types of people as you can (different cultures, mentalities, needs when it comes to cooking etc.). I\u2019m sure they would like to help you out with this, as it\u2019s their interest too. Also, I think the way you test the land, step by step, may be very helpful. Are you planning to do any other initiative like the cooking with the minimal utensils one? Or to do it again, but involving other groups of people? Have you got any new conclusion based on this activity? Let me know, I\u2019m curious.\xa0
', u'post_id': 696, u'date': u'2016-07-13 09:16:13'}, {u'user_id': 3279, u'title': u'Great project', u'comment_id': 20094, u'content': u'@Noemi thanks for highlighting the project echOPEN.
@Maria I thought what these guys are doing might interest you over at SCIMPulse and your planned prototyping\xa0events this fall\xa0
With this effort of reaching out and connecting groups doing outstanding work at the edge of health/ social care we\xa0are doing workshops in several cities in Europe, and one is in Paris on the 25th of September with more open science and tech projects. Will you be joining?
\n\n@Nadia may know best who else in the community is going to be there.\xa0
\n\nI\'m in Brussels the day before and probably won\'t come, but still very interested.
\n\nOh, thanks for the reply.\xa0"regulation by design".. this is new to me and I hardly get what it means, so when you have some time do tell.
', u'post_id': 732, u'date': u'2016-09-12 16:55:12'}, {u'user_id': 3349, u'title': u'@Noemi, thank you for your comment. Safety and ', u'comment_id': 11010, u'content': u'@Noemi, thank you for your comment. Safety and regulation are very important for us and as a community and a\xa0non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of "regulation by design" as well as "safety by design"\xa0 we first considered regulation and safety and build our development according to the main guidelines.\xa0
Then i haven\'t heard about the group\xa0about exploring\xa0open alternatives in (e)health and healthcare\xa0support. Could tell me more ?
\n\nFinally, thank you for both links, they are very interesting.\xa0
', u'post_id': 732, u'date': u'2016-09-12 13:44:07'}, {u'user_id': 3, u'title': u'How do you guys deal with safety and regulation issues?', u'comment_id': 7382, u'content': u'@Olivier hi, welcome on board. Are you part of the group coming together later this month to explore open alternatives in (e)health and healthcare\xa0support?
\n\nI\'m adding here two recent\xa0opensource projects\xa0that we know of for medical treatment,\xa0and which\xa0you might enjoy connecting with.
\n\nGrazie Rune per il complimento ...e per l\'incoraggiamento (a non esagerare!)...
\n\nEntrando nel merito del Tuo post, ritengo anch\'io occorra una "localizzazione" pi\xf9 spinta di questa piattaforma dato che purtroppo - almeno in Italia - la lingua inglese costituisce ancora un ostacolo importante e di fatto "disarma" qualunque buona intenzione.
\n\nNon me ne vogliano i gestori ed i moderatori di questo strumento, ma credo che sia inoltre necessario ripensare in modo pi\xf9 "usabile" questo spazio di comunicazione e di condivisione.
\n\nRelativamente alla questione del target "utile" per le varie iniziative, come da Te sottolineato, penso occorra pensare a strategie (ancora) locali di informazione, di sensibilizzazione e di coinvolgimento delle innumerevoli entit\xe0 rappresentative dell\'arcipelago delle disabilit\xe0 che, purtroppo per ragioni storiche, sono realmente poco inclini a collaborare fattivamente con quanti (a torto, naturalmente!) ritenuti concorrenti se non avversari nel complicato sistema della visibilit\xe0 e del riconoscimento istituzionale che si traduce sistematicamente\xa0 in sovvenzioni piuttosto che in vere e proprie convenzioni quasi sempre prive di oggettive valutazioni in tema di costi-benefici e di efficacia-efficienza in un contesto di progettazione e di pianificazione degli interventi e dei servizi.
\n\nPersonalmente, come scritto altrove, ho trovato poca predisposizione da parte di queste a me note organizzazioni a creare sinergie ed a mettersi in gioco in progetti che non si traducano in un immediato "ritorno" istituzionale. Tuttavia permango nell\'idea (folle?) che questo approccio possa cambiare in favore di un atteggiamento pi\xf9 lungimirante e pragmatico, in funzione di una maggiore diffusione delle competenze, a vantaggio di una crescente reale rappresentativit\xe0\xa0 che possa prescindere dalle dinamiche (sfittiche quanto ricattatorie) che attualmente\xa0 imbrigliano prevalentemente i portatori dei bisogni con i vari livelli dell\'amministrazione della cosa pubblica e del settore economico finanziario.
\n\nQuesto, pi\xf9 di ogni altra cosa, \xe8 uno dei "must" fondamentali di OpenCare!
', u'post_id': 501, u'date': u'2016-09-12 13:38:24'}, {u'user_id': 3331, u'title': u'Is \u2018Fuffa\u2019 sterile or fertile? Reproductive or evolutive?', u'comment_id': 26017, u'content': u'Sei un grande poeta @Francesco Maria ZAVA e i tui posts meritano un traduzione multilingua.
\n\nAs I have been virtually living in OpenCare spaces for some time I find myself absorbed and transformed into a social network junkie, searching for something, being inspired, learning, trying to add value. Many things to say\u2026.so i\u2019ll just get to the point...and to do so I need some labels (\u2018etichetta\u2019). \xa0
\n\nI am in the group of \u2018suppliers\u2019 who are supposedly helping \u2018consumers\u2019
\n\nMy impression is that this network tissue is made of 99% \u2018suppliers\u2019 leaving the \u2018Fuffa\u2019 sterile. Although \u2018fuffa\u2019 tends mysteriously to grow by it self I believe we seriously need to involve some fertilizers and seeds.
\n\nWorth saying: where are the \u2018consumers\u2019 ? How can we involve the users (handicapped, diabetics, etc)? And I intend direct, firsthand involvement here like this https://edgeryders.eu/ka/node/6503.
\n\nMy idea is a pledge for everybody to try to invite the \u2018consumers\u2019 to comment.
\n\nWe need a better landing page than opencare.cc (but I have no idea). In local languages. A way of triage connecting people with common issues as I have already pointed out elsewhere. \xa0As OpenCare is pretty scattered we need some labels (like it or not)
\n\nWhat do you guys @op3ncare, @Costantino,@Nadia, @Alberto, @Federico Monaco think?
\n\nI am on my box againg because I have been sharing the link opencare.cc and https://edgeryders.eu/en/op3ncare/home. Either people finds it too intimidating (like i did) or they don\u2019t care. I\u2019d like to know
\n\nNote: Fuffa is the unesthetic little wad of wool that forms on wool clothes or hot air
', u'post_id': 501, u'date': u'2016-09-06 10:22:33'}, {u'user_id': 3185, u'title': u'In realt\xe0 il mio timore \xe8 che tale ', u'comment_id': 24910, u'content': u'In realt\xe0 il mio timore \xe8 che tale esposizione risultasse davvero troppo fantasiosa, utopica, ed un pochino "fuffosa".
\n\nQuesto \xe8 per\xe0 ci\xf2 che penso realmente, nonostante poi la vita dispensi indicazioni e "risultati" di tutt\'altro indirizzo e spessore.
', u'post_id': 501, u'date': u'2016-05-28 16:58:37'}, {u'user_id': 3310, u'title': u'coinvolgere soprattutto il mondo del bisogno', u'comment_id': 23786, u'content': u'E\' molto interessante e conciso ci\xf2 che scrivi, soprattutto quanto segue: "una via percorribile, questo \xe8 il presupposto e nel contempo l\'obiettivo del Progetto, che deve sicuramente sorprendere, sollecitare e coinvolgere soprattutto il \u201cmondo\u201d del bisogno, oltre a quello istituzionale ed economico sociale, per garantire un terreno \u201cdi coltura\u201d favorevole all\'avvio di iniziative e progetti che naturalmente rispettino l\'integrit\xe0 delle persone e delle loro legittime aspettative, che debitamente tengano conto del supporto e dell\'impegno della collettivit\xe0 e che ne garantiscano l\'azione solidale attraverso le buone pratiche di indirizzo e di governo locale, nazionale e transnazionale."
\n\nGrazie @Francesco_Maria_ZAVA
', u'post_id': 501, u'date': u'2016-05-28 10:18:57'}, {u'user_id': 3185, u'title': u'Per il momento, considerando tutta una serie di ', u'comment_id': 22788, u'content': u'Per il momento, considerando tutta una serie di difficolt\xe0 "logistiche", \xe8 mio desiderio misurarmi fattivamente sull\'idea che decideremo il prossimo Mercoled\xec 1 Giugno a WeMake, nel corso della terza sessione di co-design del Progetto.
\n\nTuttavia, poich\xe9 l\'appetito vien mangiando, non escludo di cimentarmi in futuro su idee e progetti ben pi\xf9 "personali" ...includendo la super wheelchair interattiva!
Replicando brevemente sul tema del cammino interiore, confesso di essere altrettanto sopreso e contento di come un lungo percorso "sotterraneo" - carsico - abbia trovato uno sbocco in modo cos\xec semplice e naturale. Evidentemente il coinvolgimento in un progetto di confronto e condivisione costituisce una vera e propria tecnica "clinica riabilitativa" per le nostre vite, troppo abituate a restare oggetto di valutazione - e di dispute - da parte di altri.
', u'post_id': 501, u'date': u'2016-05-28 16:54:15'}, {u'user_id': 4, u'title': u'Eh :-)', u'comment_id': 22513, u'content': u'Insomma, non stai pi\xf9 hackerando la sedia a rotelle, ma\xa0te stesso.\xa0Diventando tu stesso un maker, sposti la tua disabilit\xe0 da condizione immutabile in problema da risolvere. Se \xe8 cos\xec, che dire, chapeau.
\n\nPer\xf2, senti: nel mondo maker\xa0anche i viaggi\xa0interiori si fanno smanettando su progetti, no?\xa0In smanettamento veritas. E bisogna pure smanettare su qualcosa! Mi chiedevo solo se state ragionando di cosa fare nelle prossime settimane.\xa0
', u'post_id': 501, u'date': u'2016-05-09 18:39:15'}, {u'user_id': 3185, u'title': u'Nel corso della prima sessione di co-design avvenuto ', u'comment_id': 21773, u'content': u'Nel corso della prima sessione di co-design avvenuto lo scorso mercoled\xec presso WeMake nell\u2019ambito del Progetto OpenCare ho avuto modo di esplicitare due miei interessi particolarmente \u201ccomplessi\u201d, quali la mobilit\xe0 e la residenzialit\xe0 prevalentemente per le persone con disabilit\xe0 fisico motorie, confrontandomi con le sensibilit\xe0 e le aspettative dei miei \u201ccompagni\u201d di gruppo, impegnandoci a sviscerare problemi, elencare ostacoli e ad escogitare idee risolutive.
\n\nAl quesito di cosa possa fare WeMake, ma sopratutto il Progetto, potrei sicuramente e molto facilmente rispondere con una richiesta di rendere quanto pi\xf9 possibile concreti questi sogni. Tuttavia la migliore replica che potrei dare \xe8 quella, altrettanto \u201csemplice\u201d, di pormi nella condizione di sintetizzatore e di promotore dei miei bisogni, abbandonando le resistenze dettate da una forma mentis descritta nel mio post e che \xe8 molto difficile da cambiare anche per me.
\n\nCredo sia questo il valore innovativo di questo percorso piuttosto che il prodotto o il servizio che andremo a progettare \u2013 e magari ad implementare \u2013 del quale comunque verr\xe0 considerata la capacit\xe0 di cogliere una richiesta e di dare una risposta concreta.
\n\nSono arrivato a WeMake attraverso lo hipe di Arduino e con una visione limitata alla mia mobilit\xe0 auspicando la realizzazione di una carrozzella elettronica pi\xf9 intelligente e predisposta ai miei bisogni reali quotidiani. Oggi comprendo che la vera sfida non concerne esclusivamente gli aspetti tecnologici, per altro non di poca rilevanza, quanto piuttosto il raggiungere uno obiettivo condiviso da pi\xf9 persone.
\n\nInsomma, parafrasando una antica saggezza, il Progetto pone ciascuno di noi al centro di un viaggio in primo luogo interiore \u201csoppesando\u201d solo successivamente con la sensibilit\xe0 e la determinazione di quanti presenti sul tracciato la valenza e le opportunit\xe0 della meta.
', u'post_id': 501, u'date': u'2016-05-07 09:57:00'}, {u'user_id': 4, u'title': u'Prossimi passi?', u'comment_id': 19885, u'content': u'... e grazie dei complimenti. OpenCare per ora \xe8 una bella idea. Per diventare un progetto importante deve crescere tanto. Speriamo di poterlo fare insieme.\xa0
\n\nPer te in particolare, quale pensi possa essere il prossimo passo? Cosa ti piacerebbe fare con WeMake e OpenCare?\xa0
', u'post_id': 501, u'date': u'2016-05-06 10:31:41'}, {u'user_id': 3185, u'title': u'Grazie Nadia! ', u'comment_id': 17118, u'content': u'Grazie Nadia!
Stoleggendo le vostre riflessioni, grazie per il tempo dedicato a condividerle. Mi ci vuole un po 'pi\xf9 tempo per scrivere in italiano, ma cercher\xf2 di condividere le mie esperienze in questo fine settimana!
", u'post_id': 501, u'date': u'2016-05-05 10:39:15'}, {u'user_id': 1003, u'title': u'Benvenuto! ', u'comment_id': 6827, u'content': u'ah bene bene! vedo con piacere che stai prendendo alla grnade confidenza con la EdgeRyders
il tuo pi\xf9 che ben accetto protagonismo \xe8 prezioso (e competente!)\xa0
\n\nil secondo punto mi piace un bel po\' \xa0
So Happier, an evaluation study on physical actitivity effects on elderly wellbeing, reports significant outcomes in terms of numbers of falls (one less with every 18 months).\xa0What would be even more interesting is to see if there are community led projects similar to these which are truly open : they cater to anyone who wants to, providing\xa0full\xa0open access to all stakeholders\xa0delivering or benefitting from the service:\xa0I see both Gymsana and Happier cater to\xa0a controlled target and study population - in this case people in nursing homes.\xa0
\n\nEzio Manzini who is a service designer and community member, has written about open networks of care here. I\'m linking to it because you wrote that\xa0you\'re interested in new ecosystems and intersections, which is exactly the topic we are exploring too!
', u'post_id': 526, u'date': u'2016-09-12 10:00:03'}, {u'user_id': 3384, u'title': u'Undisclosed content ', u'comment_id': 12878, u'content': u'Undisclosed content', u'post_id': 526, u'date': u'2016-08-31 15:52:18'}, {u'user_id': 3384, u'title': u'Undisclosed content ', u'comment_id': 12475, u'content': u'Undisclosed content', u'post_id': 526, u'date': u'2016-08-31 15:51:25'}, {u'user_id': 3384, u'title': u'Undisclosed content ', u'comment_id': 11386, u'content': u'Undisclosed content', u'post_id': 526, u'date': u'2016-08-31 12:25:26'}, {u'user_id': 3, u'title': u'More about Gymsana?', u'comment_id': 7688, u'content': u'Hello (again)! You\'ve been so generous with describing your path that I can\'t but introduce myself too - here is my story as a fellow social change worker.
\n\nI find interesting what you write about the need for different\xa0social change outfits that make the actual mission\xa0interesting to other sectors, and I recognize in this newer projects which have a sexier appeal to some audiences - to me, the best\xa0example is the invention of corporate social responsibility as a shortcut of the private sector spilling into the third sector. With all its limitations, I can see why it is appealing for companies.
\n\nI\'m curious: what do you think was a reason why\xa0Gymsana achieved validation and impact? You mentioned that it brought new standards of care for the elderly, do\xa0you mean in\xa0measurements ? (I browsed the website in French, but couldn\'t find anything about its\xa0impact).
', u'post_id': 526, u'date': u'2016-08-28 15:26:15'}, {u'user_id': 3, u'title': u'How does the collaboration with the city work?', u'comment_id': 7177, u'content': u'Hi @Kipos3, welcome to Edgeryders. I\'m a colleague of Natalia and Pavlos whom you probably know already, based in Romania. Thanks for sharing your project, I\'m a fan of community gardening ever since I\'ve been to Tbilisi in Georgia and we met a group called Guerilla Gardening (meet @Nick_Davitashvili one of their leaders here), who were camped in a public park but also did a lot of school activities to teach kids how to plant. See this video starting from 50\':
\n\n \n\n\nBut their relationship with the local authorities is nowhere near as good as yours. You can get some of the hints from their name \xa0they are\xa0trying to get the pedestrian areas secure from cars by setting up planting flowers and trees in second hand tires on\xa0the sidewalks.\xa0They get fined because officially it\'s considered littering and throwing garbage around. I understand this is not them acting offensively, but solving problems\xa0that authorities won\'t deal with.
Curious: how did Kipos3 turn administration into an ally?
', u'post_id': 731, u'date': u'2016-09-12 08:29:00'}, {u'user_id': 3, u'title': u'How does it work, this mix of services?', u'comment_id': 7143, u'content': u'@Kostis_Samaras thanks for telling the story. Are you yourself volunteering in this community?\xa0
\n\nI\'m curious how does the group\xa0mix food provision with spiritual support, and if it is the same people who receive these two different\xa0kinds of service. Alternatively, I can imagine people who have accessed new levels of mental wellbeing are in turn more inclined to pay it forward and do humanitarian actions, like in Maria\'s personal history.
\n\nAlso, have you participated in the OPENandChange workshop? I\'m working with Natalia, Pavlos\xa0and others here and have been watching what is happening in Thessaloniki from afar, it\'s been great to see people very active on the ground!
', u'post_id': 730, u'date': u'2016-09-12 07:29:52'}, {u'user_id': 854, u'title': u'Just a first, liminal reflection...', u'comment_id': 8137, u'content': u'Thank you again @nadia for pointing this out.
\n\nI am not sure I fully grasped the purpose of this, as the text is touching on so many issues at once. I will just focus on the questions to the peers.
\n\nSustainability can be achieved by any of the mechanisms you mentioned, and more (how about connecting a parallel currency to your activity, creating a membership parallel economy, the likes of Sardex?)... However, the key is that sustainability is not something that can be described in general terms. One has to map the entirety of value chain, and interfaces to surrounding ecosystems, to form an idea of how to become sustainable.
Again, much depends on what are the incumbents you are talking about, case by case (2 hospitals will react very differently, because their governance is managed by different individuals... even if the general administration may look the same), and by how much, and what kind of, intersection your activities have with theirs... Identifying a few "ambassadors", people that may even be critical but willing to engage and discuss, on both sides (also within your own community) is possibly the first step... verbal communication is easier than written, and maps or other interpretable/symbolic representations can help confronting the different narratives to converge... I would avoid interfacing two different communities by exchanging long texts first
In your case I am not sure why you would like to "work around" any of this... maybe a specific case could help me focusing on a pragmatic reply. In general demonstrating a solid, well thought-of scheme of access to information, education/training, mentoring, and peer evaluation, helps convincing that the operations are sensible and aligned with the purposes of the law. However, there are many details one should consider only on a specific plan: what safety nets are needed for you and your community? Can you keep track of activities and consequences? etc...
Registrations/certifications/licensing are in place as fences, one of the tools in the arsenal of safety in healthcare... it is possible to negotiate ways out when it is proven that safety is guaranteed never the less... this may imply lobbying and meetings with authorities, but one can find examples from prior cases that are useful... as instance medical students can practice some medical activities under mentoring before being graduated and licensed... but the University Hospital has a wide safety net set up...
\n\nIt\'s not impossible to find good solutions, and regulators are often discussing of innovation in this field of regulation, but there are no shortcuts...
', u'post_id': 521, u'date': u'2016-08-11 11:43:23'}, {u'user_id': 3331, u'title': u'No shortcuts...!!!!????', u'comment_id': 11903, u'content': u"Maybe I'm wrong but I though the OpenCare proposal was to shortcut.
\n\nShortcut waitlinglists
\n\nShortcut ineffective\xa0bureaucrazy
\n\nShortcut documents that separates people and not connecting them
\n\nI thought that we were supposed to be innovative and find a solution.\xa0I got to find out if I'm in the wrong place here. ???
", u'post_id': 521, u'date': u'2016-08-22 10:13:47'}, {u'user_id': 854, u'title': u'maybe worth mentioning...', u'comment_id': 15136, u'content': u'Although I am personally in favour of leaving behind the "fences" of responsibility, and of redesigning the system for accountability and ultimately more pervasive quality... maybe it\'s time for me to be my own devil\'s advocate:
\n\nSystems of fences (certification/licenses/etc) are not always an innovator\'s enemy. Dealing with responsibility is a lot easier (and often, paradoxically cheaper in the long run) than dealing with accountability.
\n\nIf your innovation is specialized, small in scale, or incremental (hence fitting well in the ecosystem where the\xa0incumbents are thriving), maybe it\'s easier to figure out how to obtain certifications and licenses, than how to establish safety nets and sandboxes to work outside of them (formally,\xa0but within the purpose of defending your "users").
\n\nDon\'t always start from the assumption that, because others complain about the regulations (often as a narrative to raise their prices), they are indeed an obstacle for you. Do your own due diligence, before thinking of how to work beyond (rather than around) them.
', u'post_id': 521, u'date': u'2016-08-11 11:38:01'}, {u'user_id': 3331, u'title': u'Objective Costs', u'comment_id': 17949, u'content': u'@marcomanca, I do agree to some extent. However we need data. Do you have ideas of the costs & times that you can provide?
\n\ncost and times should be including applicants cost and time
\n\neg.
\n\nCE marking a medical device (>100k\u20ac, 1 year)
\n\nApproval \xa0from the ministry of health for a medical device (15k\u20ac >2 years)
\n\nPatent (50k\u20ac, 4 years)
\n\nand there is more
', u'post_id': 521, u'date': u'2016-08-22 10:21:27'}, {u'user_id': 4, u'title': u'On autonomy, prevention and bleeding out money', u'comment_id': 20474, u'content': u'Very interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word "autonomy" in the sense of "a state of\xa0not\xa0having to be coupled with the world at large in a way we find troubling." Some people in Edgeryders uphold a similar concept, dependency reduction.
\n\nIts implications are manifold (I have made a short summary here, but I would recommend reading the whole article if you have not done it already). But basically, it comes down to emphasizing prevention. Illness is not only bad for the individual, it is a burden for the community. You don\'t want that, so you try to take responsibility for your health. You adopt a healthy lifestyle: you still might get sick, but at least you\'ll have down your best, and you will know that the community knows. This is close to your own attitude, if I understand this right.
\n\nWhich brings me to a question: wellness, exercise, nutrition\xa0are the low hanging fruit, the place where you are likely to get most results per unit of effort. Why not stick to them? Why struggle with licenses and regulatory hurdles?
\n\nAnd again: you mention sustainability, and well you should. Are your present activities sustainable? Or are they bleeding out money?
', u'post_id': 521, u'date': u'2016-08-11 17:00:23'}, {u'user_id': 3367, u'title': u'Interesting view on autonomy', u'comment_id': 22039, u'content': u'@Alberto. \xa0Thank you for sharing that article and your comments. \xa0I must admit, being here in the US and have\xa0gone to school near some Amish communities, I was quite surprised to see many corrollaries with our work. \xa0There perhaps is a strong negative stereotype ingrained in our culture against these "plain type societies", mainly because of disagreements on their heirarchies and religous aspects. \xa0In addition, across the US, medical students are always taught the example of refusing life saving treatments for children for religous reasons as being paramount to abuse (which can definitely be the case in some instances). \xa0But the article reminded me of the Zapatista models of healthcare, with a strong emphasis on prevention. \xa0As to your specific comments, I definitely agree that prevention is paramount and something that we will emphasize. \xa0But we wanted to differentiate ourselves from other "wellness groups" which focus on yoga and massage and nutrition. \xa0Not to discount them, but the current state of health in the US is that when people do get sick, they are forced to access health institutions. \xa0Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly. \xa0Also, many people who do have insurance, have insurance only for emergencies, hence their propensity to go to ERs, which will always be covered. \xa0And finally, here in NYC, there is always the shadow of Hurricane Sandy which shut down many of the lower Manhatten hospitals, including the large public hospital, essentially limiting people\'s access to public healthcare for months. \xa0So in that context, we want to be able to provide some care for people so that their minor health concerns can be treated without having to go to the hospital. \xa0But obviously always cognizant of our own limitations in care.\xa0
\n\nThank you again for the comments and I look forward to continuing the conversation!
', u'post_id': 521, u'date': u'2016-08-13 01:36:47'}, {u'user_id': 3, u'title': u'Your balancing act', u'comment_id': 24022, u'content': u'Hi @Woodbinehealth, you\'ve surely raised the bar for us when talking about health autonomy. Not much to add after the insightful comments above, but wanted to commend you for what I see is a very grounded, mixed\xa0approach\xa0- setting up complementary infrastructure\xa0to the current state provided one, enabling\xa0training for non-medical workers,\xa0prevention coupled with basic treatment..\xa0
\n\nAt the same time you are adamant about the need for a radical, revolutionary approach, and this is where you make a very clear standpoint which to people like Marco above is intriguing.\xa0
\n\nAs to your question "How do you work with or around licensures/certifications to provide safe care?" perhaps @steelweaver and his\xa0experience can help.\xa0He is\xa0in the process of setting up an acupuncture\xa0clinic at the edge of (commercial) regulations.
', u'post_id': 521, u'date': u'2016-08-15 06:42:31'}, {u'user_id': 137, u'title': u'One more thing ', u'comment_id': 26031, u'content': u'There is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the\xa0number of emergencies and helping save a lot of money. It sounds very much like Bookchin\xa0to me: small communities tackling local problems, using\xa0collectives\xa0procedures and new technology.
\n\nfingers crossed for your work, it really looks promising;)
', u'post_id': 521, u'date': u'2016-08-15 11:07:50'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 27805, u'content': u'Undisclosed content', u'post_id': 521, u'date': u'2016-08-17 00:57:38'}, {u'user_id': 3331, u'title': u'Startup', u'comment_id': 29070, u'content': u'Good story\xa0@Woodbinehealth. I was searching for the part where starting up is described. How did you gather the people needed to startup? How do you recruit \'clients\'?
', u'post_id': 521, u'date': u'2016-08-22 11:58:18'}, {u'user_id': 3367, u'title': u'Basic Needs', u'comment_id': 29958, u'content': u'@maymay, you bring up a great point. \xa0One aspect of what we\'re trying to do is balance the desire for a new world with the recognition of the reality of the world we live in. \xa0That we can strive for prevention, but we must address the material reality of how people live. \xa0The battle to live paycheck to paycheck is very real here in the city, especially for us as a collective. \xa0But many of us are sheltered from things like homelessness and hunger in a more acute way because of our social privilege, education, social status, etc. \xa0Not to say that members haven\'t experienced that, but on the whole, we are somewhat privileged. \xa0We struggle with the more care driven models of soup kitchens, shelters, NGO-type aid groups because 1) we don\'t have the infrastructure to develop such aid and 2) we don\'t want to create another area of dependency, where the NGO model fills a hole in a society. \xa0So likely, we will have to create relationships with such institutions who can and are doing that good work, but that we will continue to straddle the line of revolution. \xa0For example, I work at one of the public hospitals in the city and regularly help people navigate that system. \xa0But at the end of the day, we don\'t believe these systems have the answer we are looking for, similar to what @Alberto was talking about in regards to the Amish. \xa0Thanks again for the great discussion. \xa0And @markomanko, agree that we have to study the idea of both being within the system and out. \xa0Here in the US, the professionalization of many specialities places it in a realm outside of normal access, ie through insurance companies, inhumane public institutions, high priced private centers. \xa0An on-going struggle fer sure!
', u'post_id': 521, u'date': u'2016-08-29 23:25:21'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 30317, u'content': u'Undisclosed content', u'post_id': 521, u'date': u'2016-08-29 23:33:12'}, {u'user_id': 4, u'title': u'Great debate', u'comment_id': 30443, u'content': u'Kudos @Woodbinehealth and @maymay .
', u'post_id': 521, u'date': u'2016-08-30 08:41:26'}, {u'user_id': 8, u'title': u"Let's make this the topic/theme for the NYC workshop?", u'comment_id': 30515, u'content': u"Would you be up for articulating the question and posting it in a status update on the event page? This would help get the ball rolling. Maybe like to this thread? I'm looking into the accomodation solutions btw. At this end we are actiely working towards settingup a phycial edgeryders space, some kind of coliving and working that would allow us to host people for extended periods of time as they work on their initiatives . i.e. time free from the tyranny of having to pay rent to just get on with the work that needs doing. It's something I would like to bring up at the workshop too- models for doing that sustainable and with very little money.
", u'post_id': 521, u'date': u'2016-09-10 12:13:02'}, {u'user_id': 3400, u'title': u'We build a free/libre and open source solution for asthma!', u'comment_id': 24601, u'content': u'Thanks for sharing @Michel and\xa0@Costantino!
\n\nTo follow @Alberto and @Noemi, I\'d like to invite you to discover our initiative, which builds a common on respiratory health including free/libre and open-source games and flowmeter. Also on Edgeryders.
Hi Michel, nice to read you. Regarding your question about the security aspects of AsthmaPI, maybe @Eireann_Leverett has come across it or an share some thoughts around how to approach security in this context?\xa0 You can read about his work here.
', u'post_id': 706, u'date': u'2016-08-15 09:28:54'}, {u'user_id': 4, u'title': u'All components are standard and cheap', u'comment_id': 22653, u'content': u'What I don\'t understand is this: are we looking at a\xa0personal\xa0device, maybe wearable, or at one that can be shared? Is it one kit per person or one kit per village, sending SMS alerts to several people? I\'m betting one per village \u2013 CO2 levels are probably farily similar across the same village. Dust can be more of a localized\xa0problem. What do you think, @Costantino ?
\n\n@Michel \xa0: I think the sensors are shown with no shield in the video because Amiv wants to show how the kit works. This is a prototype, not engineered for mass production.
\n\nIn general, with this kind of project all components are cheap. If it is one kit per village, the easiest would be to buy three of everything, and simply replace a component as it\xa0breaks down. \xa0
', u'post_id': 706, u'date': u'2016-07-25 15:15:40'}, {u'user_id': 3340, u'title': u"I'm impressed. ", u'comment_id': 22124, u'content': u'Hi @Constantino,
\n\nIt\'s looking great, this kid is a genius. Thank you for sharing this. It\'s really a huge step assistance for asthmatic people. I think that sms message will be the most popular reminder...
\n\nWhile I\'m just \xa0worried and curious about the way to store it safely maybe in a box ?! Some of those sensors don\'t need to be covered isn\'t it ?\xa0
\n\nIf any part of the peace is broken or need any maintenance like "over heating", is not easy to fix and to find a new one here in Madagascar.\xa0
', u'post_id': 706, u'date': u'2016-07-19 07:17:49'}, {u'user_id': 1003, u'title': u'nice to meet you and check this out :)', u'comment_id': 20729, u'content': u'Hi Michel,
\n\nthanks for sharing.\xa0
\n\nWhile I\'m\xa0looking for other possible solutions and\xa0experiences in the "maker" realm, please take a look at this project:\xa0
\n\nArnav studied the causes and effects of asthma and came up with the AsthmaPi which uses a\xa0Raspberry Pi, a Sense Hat, an MQ-135 Gas Sensor, a Sharp Optical Dust Sensor and an Arduino Uno. It is programmed in Python and C++\xa0and\xa0triggers\xa0email and SMS text message alerts to take medication and remind patients to go\xa0for review visits. There is also an accompanying booklet which describes the condition and how to treat it. The sensors on the SenseHAT are used to measure temperature and humidity and the MQ gas sensor detects smoke, nitrogen compounds and host of other airborne triggers.
\n\n\n\nhttp://www.tech4goodawards.com/finalist/arnav-sharma/
\n\n@Michel What do you think?
\n\nciao
Hang in there,\xa0@Michel . Hopefully some of our more skilled community members can get in touch with you.\xa0
', u'post_id': 706, u'date': u'2016-07-16 09:29:22'}, {u'user_id': 3340, u'title': u'Many things are possible with some people. ', u'comment_id': 18670, u'content': u'Hi @Noemi, nice to hear from you again. I already meet up @Tiago here in Madagascar, \xa0I\'m sure he knows enough how things going here.
\n\nI didn\'t start yet with education for all because I don\'t have enough tools and I need to develop something that reattached on it, like who are the target as adults ,youth and childrens who are related to different services such as solar canteen, class room, school supplies, personnel and budget for this.\xa0
\n\nAbout @Alberto questions, I don\'t know if there is any community for that. I can start with some people who are interested and make one.\xa0
', u'post_id': 706, u'date': u'2016-07-15 14:47:34'}, {u'user_id': 3, u'title': u"That's right, not counting on medical healthcare", u'comment_id': 18292, u'content': u'..hi @Michel, glad to see you managed to post! I think what @Alberto is asking is if communities, or if people like you\xa0can take care of this faster or in a different way than doctors - because, like you say, this problem is out of their hand and it\'s not a priority for the system.
\n\nHave\xa0you already started with your solution of education for all? Can we help?\xa0By the way, another edgeryder here @Tiago also thinks that we need to make alternative information available for many more\xa0people. His work with solar kiosks (also in Madagascar!) is here if you don\'t know each other already.\xa0\xa0
\n\nAlso, Jean Paul @jdossou80@yahoo.com is running an information spreading group to learn how to prevent\xa0heart disease\xa0in Benin - they are using facebook for this. I found it inspiring..\xa0
', u'post_id': 706, u'date': u'2016-07-15 08:10:29'}, {u'user_id': 3340, u'title': u'Actuality and prioritize ', u'comment_id': 17289, u'content': u'Hey @Alberto! Actually Malagasy government on something else. Since ever,the health department is on a vitamin A and mosquito net campaign, \xa0vaccination against poliomelite "weaknesses of ligaments" every year. And there is no update since 2006, The Malagasy Institute of statistics on deep water. Just for record, a doctor is caring a thousand people so 1/1000 people, we are estimated about 20 000 000 habitant.
\n\nHere is a picture of a doctor make you know how it\'s look like on administration building for public health.
\n\n\n\n\xa0It\'s happening they pay from there own money to get gloves.\xa0
', u'post_id': 706, u'date': u'2016-07-14 15:54:35'}, {u'user_id': 4, u'title': u'Can asthma treatment be open?', u'comment_id': 14837, u'content': u'Hello @Michel , thanks for this great story (and thanks for taking the time of writing in English, unfortunately most people in Edgeryders do not speak or read\xa0Malagasy). Wow, I had no idea asthma was that common in your part of the world.\xa0
\n\nI am wondering if asthma treatment would lend itself to cheap, open source, DIY treatment.
\n\nThis sounds like something communities could try to crack.\xa0Does this make sense, @markomanka and @Costantino ? Would this be a possible area to work in?
', u'post_id': 706, u'date': u'2016-07-14 10:43:45'}, {u'user_id': 3340, u'title': u'Related Pictures ', u'comment_id': 7657, u'content': u'Sorry for some indecent pictures.\xa0
\n\n
Hi @focseattle, welcome to Edgeryders!\xa0How did you hear about us, I wonder? I think you\'re the first community initiative I\'ve heard about in that\xa0area of the US.. \xa0so lovely\xa0to meet you. I\'m not a mother (yet) but I can imagine the comfort in a period which can be very depressing for women for reasons that are not simple\xa0to grasp by mothers themselves, let alone by the community without a support structure.
\n\nI see the cafe was crowdfunded. Is it working now after two years? I wonder if you\'ve managed to grow your support base to not just families of color, but to others\xa0who are keen on hanging out in a more culturally aware environment..\xa0
\n\nAnd also: is your\xa0
', u'post_id': 531, u'date': u'2016-09-08 11:45:39'}, {u'user_id': 3279, u'title': u"It's a start...", u'comment_id': 16336, u'content': u'@Rune sorry for the delay in responding. Not taken negatively at all.\xa0It would be natural to analyse the risk factors involved.
\n\nFrom what I read it cost the students \u20ac70 to build from \u201ctheir\u201d resources. The students developed the wheelchair design for users in developing countries using whatever materials are most readily available in each region. \xa0The idea is that people close to the end user should be able to build, assemble and disassemble it themselves. DIY Wheelchair can be built with the most affordable materials in each country: PVC pipes, bamboo etc.
\n\n\xa0This is a solution that is always be tried and tested, back in 1993 and many others. They\u2019re aim was to develop an affordable solution to improve the lives of people. aims to promote inclusion and improve the mobility of disabled people with limited resources from developing countries, where only a minority of those in need of wheelchairs has access to them.
\n\nThe DIY Wheelchair isn\u2019t a product, but a toolkit with assembly instructions\xa0that can be downloaded and a video demonstration\xa0which lends the user to use their own resources in the region to\xa0\xa0assemble the chair.\xa0It\u2019s a start.
\n\nHowever, there are challenges of an affordable design. This type of open design has some drawbacks, since it lets users alone. Without a support network including designers, for the\xa0ergonomics to be satisfied and, users could use badly the instructions or not use them at all. More work to done in this respect.
', u'post_id': 714, u'date': u'2016-09-07 09:29:09'}, {u'user_id': 3331, u'title': u'Intriguing story - is it realistic?', u'comment_id': 7781, u'content': u'Thanks for sharing @Maria, This is not meant to be a negative or pedantic comment because I appreciate the good work.
\n\nByt, I\xa0feel that we have an ethical obligation\xa0to have a critical look at things. We must avoid encouaging\xa0engagement in risky business. Too often we create\xa0false hopes for those already challenged. I fear that we often superficially oversimplifying things to promote ourselves without realizing/measuring/acknowledge the possible positive or negative\xa0impact it may have.
\n\nI\'ve never been to Senegal so I have to use imagination to analyze the story. I put myself in the situation of a Senegalese who read the story and try to copy the concept, watching the video made by some \'rich\' guys saying this cost only \u20ac70.
\n\nI need a workshop: power Drill, bits, saw.... Ok it\'s initial investment may be covered if I intend producing lots as a business. I need to buy the materials: Pipe, glue etc. (Are hardware stores plenty and\xa0well stocked \xa0in the target country? what prices do they practice?).
\n\nHowever,\xa0I\u2019m sitting comfortably in europe. Have several hardware nearby. There you spend a lot for\xa0small quantities. Just to get an estimate I used RS online to get an idea. Pipes:40\u20ac, 10 Elbows, etc, a whopping 7\u20ac each, locktite glue 25 \u20ac.. Bicycle wheels??? Shopping cart wheels???\xa0(we are not stealing are we?)
\n\nYour shopping cart will cost me more than 200\u20ac. \xa0(See note)
\n\nWhere do I want to go? I would like to see the description of the actual prototype session where someone in Senegal, actually goes through this maker process and constructs a solid wheelchair for another person, listing difficulties, actual costs (tools,time and transport included) Why? Because we have an ethical obligation not to lead people into false beliefs. Not to encourage them into a project that may cost them much more money and resources than they think. Not to encourage taking uncalculated risks and facing a (maybe fatal?) failure.
\n\nNote I don\'t know if I looked up the right things, but if they arent I would have wasted further money and failed building the weelchair
', u'post_id': 714, u'date': u'2016-08-29 09:25:58'}, {u'user_id': 3385, u'title': u'Undisclosed content ', u'comment_id': 17712, u'content': u'Undisclosed content', u'post_id': 727, u'date': u'2016-09-03 07:13:47'}, {u'user_id': 4, u'title': u'SHWASHLOCK redux', u'comment_id': 15043, u'content': u'This reminds me of one of my favourite networked computing stories: back in 1990, the City of Santa Monica (California) launched a service called SHWASHLOCK (SHowers, WASHing machines and LOCKers). The idea for this service had come from a bunch of residents, some of whom were homeless, hanging out on the city\'s Public Electronic Network (PEN). At the time, of course, there was no Internet: PEN was a civic network accessible locally. SHWASHLOCK is the first public service designed on a computer network that I know of.
\n\nSanta Monica\'s libraries had terminals connected to the PEN, and some homeless residents\xa0were using the libraries. This is how homeless and homed residents were able to come to share a common hangout, and design together a simple, but very useful service.\xa0
\n\nIt turns out that online spaces are quite good at removing some of\xa0the social markers that make interaction across social groups so awkward (and more power to you, @Laurent_d\'Ursel , for overcoming that awkardness!). In the words of Donald Paschal, one of the homeless residents:\xa0
\n\n\u201cPEN is a great equalizer. No one on PEN knew that I was homeless until I told them. After I told them, I was still treated like a human being\u2026 the most remarkable thing about the PEN community is that a City Council member and a pauper can coexist, albeit not always in perfect harmony, but on an equal basis.\u201d
\n\nMore info on SHWASHLOCK and its implications for public participation online:\xa0http://www.cottica.net/2012/08/29/the-computers-of-the-excluded/
', u'post_id': 727, u'date': u'2016-08-29 15:36:30'}, {u'user_id': 3293, u'title': u'Of course you are welcome', u'comment_id': 13412, u'content': u'Hello Laurent, of course you are welcome, you can always bring somebody else from your team with you, i just need to know how much people will come so i prepare the accomodation as good as possible.
', u'post_id': 727, u'date': u'2016-09-06 10:29:04'}, {u'user_id': 3, u'title': u'Sure, come!', u'comment_id': 12579, u'content': u'Hi @Laurent_dUrsel nice to meet you, I\'m one of Yannick\'s and Nadia\'s colleagues, coming to Brussels for the workshop.
\n\nIndeed, the dates have changed so this workshop is the only one, and I\'m sure you are welcome to join anyway. Looking forward to meet you!
', u'post_id': 727, u'date': u'2016-09-06 09:31:25'}, {u'user_id': 3385, u'title': u'Undisclosed content ', u'comment_id': 11594, u'content': u'Undisclosed content', u'post_id': 727, u'date': u'2016-09-03 07:04:32'}, {u'user_id': 3293, u'title': u'Good luck with finding the budget!', u'comment_id': 7759, u'content': u'Hello Laurent, thanks for sharing your story, really interesting to read about the inside of a collective that i hear a lot about in the last couple of years. I also read your article on Bruzz about the financing and i really wish you luck. I wanted to contact you if you would like to share this story at the workshop event we are holding on the 24th in Brussels? It would really be great to have you also participate in a moment where local organizations can interconnect and talk about care and how they organize. More info:\xa0https://www.facebook.com/events/280924708934187/
\n\nKindly regards,\xa0
\n\nYannick
', u'post_id': 727, u'date': u'2016-08-29 07:24:25'}, {u'user_id': 3331, u'title': u'Legislation is stretching causality too far everyday', u'comment_id': 29921, u'content': u'@Alberto, I\'m have no expertice in that matter and I dont like it, but here is my two cents.
\n\nYou feel ill, pain i your arm and vomit in the mittle of the nigth (real life\xa0example). Instead of calling 112, you use Buoy to call a friend (thereby wasting precious time). Say, your friend takes his time. He sits with you a couple of hours, because it seems like a simple flu. Around noon they pick up your dead body - you had a cardiac arrest.\xa0
\n\nThe judge will say: The\xa0provider of Buoy\xa0has discouraged that 112 was called, impeding immediate lifesaving intervention from a heart ambulance and could be condemned as culpable homicide\xa0and \xa0the friend (who could even be a doctor) did not recognize the symptoms (like in the real life example) is also responsible.
\n\nEvery week the press has\xa0stories where \'Legislation is stretching causality too far\' \xa0and to protect OpenCare initiatives against absurd accuses we will need to take constructive measures, but we need some legal people\xa0to help us.
\n\nMaybe we could even find a way of having a collective insurance (Open?). Could something like what e.g. AirBnB\xa0offers be an idea?
', u'post_id': 5848, u'date': u'2016-08-25 07:03:03'}, {u'user_id': 4, u'title': u'"Causing" health damage?', u'comment_id': 29900, u'content': u'Wait, @Rune . Why would Buoy be "causing" health damage?
\n\nSuppose I am a Buoy user. I get hurt. I call my friends. They come help me out, but do not do the right thing. As a result, I have some damage, let\'s say an ugly scar that could have been less ugly.
\n\nDid they "cause" the damage? Isn\'t that stretching causality a bit far?\xa0
\n\nAlso, is this not exactly the same problem of people engaging in first aid, for example Community First Responders in the UK? It must have been solved by now, or these schemes would be dead in the water.
', u'post_id': 5848, u'date': u'2016-08-24 19:38:28'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 29661, u'content': u'Undisclosed content', u'post_id': 5848, u'date': u'2016-08-22 15:44:40'}, {u'user_id': 3331, u'title': u'Glad I met you', u'comment_id': 29373, u'content': u'Hi\xa0@maymay, glad I met you. Now we have talked about the weather i\'d like to talk business. We are working on setting up a opencare-makerspace and your experience and software could be of great help. (I just read your description now so maybe im inferring too much).
\n\nYou say you have implemented what I read as an automatic triage (\xa0intake, dispatch, and\xa0field support toolkit). Could it be used to \'filter\' people that could benefit from\xa0the initiative?
\n\nIf I understand right this can be used as an alternative to 112. So \xa0Buoy poses a risk and could be identified as \'responsible\' for causing health damage. Have you measures to protect you from that? Please consider share in my post:OpenCare Legal Evasion Guide: mortal issues for humans helping out
\n\nIll continue over on your presentation post
', u'post_id': 5848, u'date': u'2016-08-22 15:34:44'}, {u'user_id': 4, u'title': u'Lesson learned!', u'comment_id': 28233, u'content': u'Whoa, I did not think I\'d cause such a stir. Apologies for any inconvenience. I do not know you well yet, and I took a shot in the dark as to whether you might like to publish papers or not (and where).
\n\nWe all agree on one thing: publishing is not a high priority. I very occasionally publish my own results. I do it because I find the process of writing them in a watertight academic format useful. Once they are written, it makes sense to share them. But I am not a professional academic, and publish or perish does not concern me.\xa0
\n\nI do\xa0read\xa0academic papers. Ok, let\'s just move on.
Just received another invitation:Sports Medicine and Rehabilitation Journal.\xa0
\n\nJust to say that possibilities are plenty @Alberto\xa0
', u'post_id': 5848, u'date': u'2016-08-22 13:29:47'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 25691, u'content': u'Undisclosed content', u'post_id': 5848, u'date': u'2016-08-22 14:42:52'}, {u'user_id': 3331, u'title': u'Should we catch the fish before frying it?', u'comment_id': 25680, u'content': u'On the serious side @maymay and @Alberto. I see that the OpenCare proposal has 3 pages of academic references, part of the deal for getting a (lousy)\xa01.x Mio from the EU. (@maymay check my resentment about 5mio grant in\xa0Doctor.. could you hack me a neuroprosthesis, please?). Unfortunately I fear that\xa0we need to "howl with the wolves" and publish peer reviewed to be egligible of funding for future rounds. As my director say (or copies) "publish or perish".
', u'post_id': 5848, u'date': u'2016-08-22 14:36:01'}, {u'user_id': 3, u'title': u'Kudos Maymay', u'comment_id': 25628, u'content': u'I am not much interested in discussing a hypothetical ideal academia in the world as it ought to be, because I am too busy working within the constraints the world as it is.\xa0
\n\nLovely put, @maymay. As someone who has been with Edgeryders from the beginning I can say you\'re probably in the right place, and I fondly remember\xa0the early days when everything that sounded remotely similar to "company", "business", "consultancy", "grant money" would sound frightening or despicable\xa0 Now, we seem to be better at finding\xa0workarounds that keep the spirit but leave some room for engagement with where resources are. Some deliverables like scientific articles will be there at the end of opencare, which is technically an EU funded project, but at the same time new relationships, communities and work done will be there too, and hopefully spinoffs to fly free, especially from OpenandChange swarm application.
I did'nt say this. No need. Lots of people say it.\xa0
\n\nQuestion:\xa0I thought this was a OpenCare forum or am I in the wrong place?. I hope to contribute for the better. Observe, Invent solution\xa0and Implement.
\n\nOpenCare is supposed to challenge the system (page 1 of proposal) or is it just hot air to get the grant?
", u'post_id': 5848, u'date': u'2016-08-22 14:44:12'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 25520, u'content': u'Undisclosed content', u'post_id': 5848, u'date': u'2016-08-22 14:32:55'}, {u'user_id': 3331, u'title': u'Tears (of joy) in my eyes', u'comment_id': 25427, u'content': u'Oh, @maymay\xa0you just saved my day. Laughing is supposed to be healthy and you are so right and so wrong at the same time. On the actual implementation of academia I share you 100% on the purpose of academia I 100% disagree. I\'d love to offer you a beer but unfortunately I\'m classified Academic. Disabled by a\xa0Ph.D leaving me as the worst scum of the universe. I hope to find some rehabilitation by joining opencare
\n\nHope that Tesla, Alan Turing, Maxwell, Gallilei...have however been useful to the society. And maybe after we have revolutionized the world we can change academia as well. What about OpenAcademia?
\n\nP.S.\xa0You forgot to mention that we all serve one monopolized master: \'thompson reuters\' (many\xa0TED videos and web posts about that).
', u'post_id': 5848, u'date': u'2016-08-22 14:22:34'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 25233, u'content': u'Undisclosed content', u'post_id': 5848, u'date': u'2016-08-22 14:14:47'}, {u'user_id': 3331, u'title': u'Compiler error:Not enough arguments for the input function', u'comment_id': 24567, u'content': u'Thanks @Alberto, I see they have an impact factor of 1.1 and I hope my next publication is ending in a IF:3+ journal so as instituion it\'s not interresting.
\n\nIt\'s not open access so no OpenCare value.\xa0
\n\n@maymay\xa0publishing in a serious journal has several advantages
\n\nYou get peer reviewed = constructive criticism on your work and ideas
If it has impact factor your institution gets funding (OpenCare??)
You get rocksolid references for your work to claim: 1\xa0seriousness and validity of your work, 2\xa0your CV for grant/job applications, 3 visibility (also on google) 4. contacts ....
However I would have imagined that the EU wants to see some publications for their money. \xa0(Often thats what counts most)
\n\nTherefore I say, let\'s write a joint paper.
\n\nI\'m into\xa0rehabilitation so\xa0I have an invitation from\xa0\'Occupational Therapy International\' openaccess, peer-reviewed, IF 0.7
\n\nWho could be interested?
', u'post_id': 5848, u'date': u'2016-08-22 13:26:01'}, {u'user_id': 4, u'title': u'No worries', u'comment_id': 23240, u'content': u'You do not have to explain, @maymay . I thought\xa0you might already have\xa0an academic format description of Buoy stashed somewhere \u2013 your documentation is advanced. But hey, no stress. As I wrote to Rune, it\'s an opportunity.\xa0
', u'post_id': 5848, u'date': u'2016-08-22 11:10:36'}, {u'user_id': 3363, u'title': u'Undisclosed content ', u'comment_id': 23173, u'content': u'Undisclosed content', u'post_id': 5848, u'date': u'2016-08-22 10:34:25'}, {u'user_id': 4, u'title': u'Your call', u'comment_id': 22332, u'content': u'Hey, it\'s an opportunity. In practice, I imagine you\xa0already have\xa0a paper somewhere. What I would do is: email Katarzyna, ask her whether what you are doing is what she wants to publish, agree with her on deadlines etc. If you have to write a paper from scratch, this might be a bit tight.
\n\nYou should affiliate as it suits you best!\xa0
\n\nPersonally, I am not qualified for this stuff: I am a collective intelligence scholar using network math, not a technologist. You, @Rune , on the other hand, you are working on a \xa0quality of like technology, and you could and should get the publications in!
', u'post_id': 5848, u'date': u'2016-08-22 10:24:53'}, {u'user_id': 3331, u'title': u"I'm interested ", u'comment_id': 21179, u'content': u'It\'s a good idea @Alberto. I had some thoughts about it. At first I shared @maymay \u2018s view then I though that a joint paper would be good for the cause, thinking of a openandchange projectproposal (as shared with @Noemi) with @Costantino and @Alexander.
\n\nWouldn\u2019t it be be more appropriate writing in a (health) care related journal? (@johncoate). What about a Open access (which ieee is not) to align with our mission. \xa0Lately tons of journals are desperately seeking contributions so we can look for a journal with a \xa0higher impact (factor). (JRRD comes to my mind. I will dig up another invitation). Then, how should we affiliate? Our home institution or as OpenCare?
\n\nHowever, i\'m in! How do we start? Whos interrested?.
\n\nI can contribute with a few things related to rehabilitation technology (stroke, spinal cord injury, multiple sclerosis,\xa0hand, foot,Functional electrical stimulation,\xa0EMG control, clinical evaluation, low back pain, biofeedback....)
', u'post_id': 5848, u'date': u'2016-08-20 21:54:49'}, {u'user_id': 4, u'title': u'Yes', u'comment_id': 17830, u'content': u'According to the email received by Guy, they have.
', u'post_id': 5848, u'date': u'2016-08-20 16:05:40'}, {u'user_id': 2915, u'title': u'Have they extended the deadline?', u'comment_id': 16141, u'content': u'It shows Aug 1 as the time for full paper submissions..
', u'post_id': 5848, u'date': u'2016-08-20 14:46:00'}, {u'user_id': 4, u'title': u'No pressure', u'comment_id': 11794, u'content': u'
I also have ideas regarding more efficient or senior friendly showering (hygiene) methods, mostly foam based.
\n\nRecently I brainstormed for a self driving car mod (https://cocreate.localmotors.com/RaMansell/healthy-movement/) that could work in rehab as well, so some ideas are still warm. I had actually proposed to make it incontinence friendly as well.
Hi, @trythis, I did some research when my children were small. There are a number of patents (probably run out now) having excellent solutions. I think the solution is probably a two piece combination:\xa0
\n\n1 controlling unit
\n\n2 disposable/washable sensor
\n\nAt the time I considered a simple humidity sensor (measuring the impedance in the diaper, but its only effective for urine. What is the current state of gas detectors? A small one that could detect some compound in feces?
', u'post_id': 722, u'date': u'2016-08-29 20:58:11'}, {u'user_id': 2551, u'title': u'I know people that left to diaper industry ', u'comment_id': 15017, u'content': u"and I know some profs that work in an appropriate sensor field (e.g. Petra P\xf6tschke in Dresden).
\n\nHit me if you'd like to sit down to brainstorm a little.
", u'post_id': 722, u'date': u'2016-08-29 15:20:25'}, {u'user_id': 3331, u'title': u'I like ecofriendly solutions ', u'comment_id': 11236, u'content': u'The issue was another: Waste of resources due to untimely change and lack of timely change
\n\nNone have to do with the type of Diaper
True to that. I suspect from how\xa0you\xa0approach this that the ecofriendly solutions are just smokescreen?
\n\nI\'m a bit swamped now, but if anyone is interested to go through numerous\xa0existing sensor apps and see if there is something there.
', u'post_id': 722, u'date': u'2016-08-29 14:05:19'}, {u'user_id': 2551, u'title': u'Late to the party', u'comment_id': 27795, u'content': u'Hi @tomma I wrote you a PM. If there still is something I can perhaps help with give me a ping. Regarding tools there are certain methods that use almost 0 tools but can still get a lot done. https://cocreate.localmotors.com/nowbreakit/epoxy-minimal-mess-small-footprint-approach/
\n\nEpoxy is not cheap (unless it is a day over shelf life - ask around at boat builders or wind power manufacturers, perhaps in Rostock) but it can get a lot of stuff done. If you put some glass fiber (ask the same people for scraps) on the cardboard honeycomb it becomes very strong (but only moderately so in compression).
\n\nYou should not work where people live, and have good ventilation (wear glasses, gloves, read the fine print), but composites experience is very marketable, especially if you can work clean and precise.
\n\nIs there magnetic stuff around (bed frames, parts of walls)? If yes you can buy a big batch of magnets (the strong ones are neodym) and use them to fix wall paper, fabric or similar. They can be pretty small and cheap and still get a lot done, also for improvised electronics.
\n\nDo people use batteries a lot? Perhaps you can switch to rechargeable - with some help from Panasonic? You can build powerpacks for mobile electronics. A very basic kit will let you do a Repair Cafe and bring in more tools and parts (talk to Ifixit.com). A small amount of epoxy will also come in very handy there.
', u'post_id': 681, u'date': u'2016-08-29 16:29:31'}, {u'user_id': 3242, u'title': u'opencamp', u'comment_id': 26018, u'content': u'Hey everyone,
\n\nthanks for your thoughts! The idea of an "interactive camp" whithout\xa0the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different "problems" from each other but to organize the camp differently from the very first:
\n\n"We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs."
\n\nand as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here:\xa0http://www.roc21.net)
\n\nThe idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move\xa0to a better place as soon as possible.\xa0
\n\nBut in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp\xa0where we were\xa0building stuff all together, was really nice because we were doing something with our hands and totally\xa0forgot the situation around us.\xa0
', u'post_id': 681, u'date': u'2016-06-06 21:31:30'}, {u'user_id': 3, u'title': u'Ideally this would happen', u'comment_id': 25129, u'content': u'Alex and Tomma can of course give you a more informed view, but on the top of my head I ask myself what goes in the mind of someone who landed there and expects this to be\xa0temporary and short, only to see that days go by and turn into months. Volunteering is predicated on\xa0some sort of idle capacity - but would those trapped perceive that they have that time? with being busy to figure out their own situation and wanting to escape\xa0it.. (Alex makes the point of difficulty to engage\xa0here\xa0- fyi\xa0I very much liked the idea of going through community leaders to see what possiblilities are worth trying\xa0or not).\xa0
', u'post_id': 681, u'date': u'2016-06-05 07:19:42'}, {u'user_id': 3310, u'title': u'What about training volunteers to welcome next refugees', u'comment_id': 24325, u'content': u'Hi there, i\'m following this interesting discussion. I wonder if making possibile for the people inside the camp to be trained to welcome coming refugees (e.g.: moms helping with the arrival of next mothers in terms of understanding the needs, welcoming mothers, showing them around the camp and the area, taking contacts with the staff) and let them re-configure the camp as a collective action taken by the guests themselves to welcome better new refugees might help to overgo frustration and lack of communication. Having a daily goal -especially a shared one- might help and leaving one day the camp knowing that you did a part to make a better place of it would turn a "senseless part of my life" in a good memory of commitment and engagement.
', u'post_id': 681, u'date': u'2016-06-05 05:55:12'}, {u'user_id': 4, u'title': u'Meanwhile....', u'comment_id': 22641, u'content': u'I am trying to interest the EC\'s Policy Innovation Unit in the idea of a "self-organized camp", based on the intuition by @Alex_Levene \u2013 and now this confirmation by @Tomma and others.\xa0
\n\nBut, I am not holding my breath. I will keep you guys posted.\xa0
', u'post_id': 681, u'date': u'2016-06-04 21:11:30'}, {u'user_id': 2569, u'title': u'Hi Tomma,\n\nYou final comment here about wanting people ', u'comment_id': 22200, u'content': u"Hi Tomma,
\n\nYou final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about.
\n\nI frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take/ we teach, you learn)
\n\nCreating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.
\n\nAlex
", u'post_id': 681, u'date': u'2016-06-04 08:37:16'}, {u'user_id': 3242, u'title': u'Hey Alex and Noemi!\n\nthanks for your support. To ', u'comment_id': 21277, u'content': u'Hey Alex and Noemi!
\n\nthanks for your support. To your questions Alex: Yes they are allowed to leave the camp. Its kind of hard for them to bring\xa0friends inside who dont live there though (pretty weird feeling because it was so easy for us to enter)\xa0
\n\nWe actually had a little experiment today and brought materials like duckt tape, cable ties, strings, cardboard (materials that you dont necessarily need proffessional tools for) to one room to see what would happen. Just after a little time os insecurity they started finding solutions in terms of "unpacking". That seems to be the biggest issue.. The room is a organised mess and they wanted to have items to put their stuff in. It was a really cool experience to see how everyone together was solving problems. In the end we had two really nice shelf constructions!
\n\nThere is a lot of unused material inside the camp, that\xa0is going to be thrown away.. if there would be better communication between the organisation and the refugees they could probably use these too.. (to be fair: the Malteser who are running the camp are already having kind of good communication.. so far we only good positive feedback and lots of permissions!)\xa0
\n\nBut i really like the idea of going out of the camp to get materials,\xa0also because in the end its about not only having the courage to hack the "comfort zone" but to feel able and free in the "outside world" (that is really a feeling of home)\xa0
', u'post_id': 681, u'date': u'2016-05-18 21:24:31'}, {u'user_id': 2569, u'title': u'Not so much difference', u'comment_id': 16163, u'content': u"Hi Tomma,
\n\nThank you so much for sharing this. It's fascinating to see that there isn't a huge difference between the way people react to their spaces in an official camp and an unofficial camp like the Calais 'Jungle'.
\n\nNoone ever likes the food that is provided.
\n\nAre residents allowed out of the camp during the day? Are they allowed to bring anything they want back in with them? Or are they basically in detention?
\n\nBecause if the can leave and bring anything back in then why not provide a space nearby where they can come and collect donated items, tools etc in exchange for doing something else (e.g. cooking food for a cafe, running a cafe, teaching arabic, sharing their culture etc)
\n\nAlex
", u'post_id': 681, u'date': u'2016-05-17 12:24:32'}, {u'user_id': 3, u'title': u'The tool collection should not be difficult, but..', u'comment_id': 9576, u'content': u'..do you think you could get\xa0permission?\xa0
\n\nAnother think that you might consider was\xa0pointed out by Alex (volunteer\xa0in Calais/ Dunkirk camps)\xa0in a response to Milan\'s similar efforts: "My suggestion is first\xa0to ask them how you can help, rather than guessing. We talk to community leaders on the camp every 2 weeks and ask for suggestions so we can improve our processes" \xa0That conversation is here,\xa0should you wish to exchange ideas.
\n\nVery excited to see you guys doing so much practical research, keep it up!
', u'post_id': 681, u'date': u'2016-05-17 11:14:27'}, {u'user_id': 3379, u'title': u'mont soleil...MOUNTAIN OF SUN!!!', u'comment_id': 20239, u'content': u'well not all the time but we get the most sun in swiss..thats why we have the first solar park in europe here...\xa0
\n\nright..about the project. essentially we are a synergy hub for people who see that we need to strengthen the parallel reality..the " normal" - we work together\xa0to make these dreams come true... why do we protest? why do get angry at things? - ...and what good is that going to do when you know how the world is governed... that most of all we see is preplanned and we are just going along for the ride?// well... thats changing... people are waking up to the matrix... and yes... we are making a differnece..and yes we are turning back the tide... our quiet revolution is gaining momentum... and the establishment suddenly realise they wont have everything their own way anymore... we have a long - a very long way to go to raise the consiciousness....but we are doing it here...and with YOUR help... we can make this the EPI centre of that change...
\n\n', u'post_id': 721, u'date': u'2016-08-29 12:10:46'}, {u'user_id': 4, u'title': u'Which project?', u'comment_id': 14640, u'content': u'Great to meet you, @rainbowheart . You speak of Mont Soleil as if we understood it... but we know nothing about it. Can you tell us more about it?\xa0
', u'post_id': 721, u'date': u'2016-08-27 10:08:34'}, {u'user_id': 3, u'title': u'A reading you might enjoy', u'comment_id': 7142, u'content': u'Your mention of overcoming anachronism and the post-Occupy times we\'re living makes me think you should definitely meet the guys at BUOY, although they\'re based in the US - they are building technical\xa0platforms for coordinating group actions as their own response to the need for new culture.\xa0
', u'post_id': 721, u'date': u'2016-08-25 13:11:51'}, {u'user_id': 3, u'title': u'Invite sent.', u'comment_id': 33783, u'content': u"I messaged them on their website\xa0contact form, let's see.
", u'post_id': 33727, u'date': u'2016-08-28 14:41:50'}, {u'user_id': 3069, u'title': u"Sounds interesting @Noemi,\xa0 we don't know anyone in ", u'comment_id': 33775, u'content': u'Sounds interesting @Noemi,\xa0 we don\'t know anyone in particular from Night Scout, but, indeed, it would be good to let them know about OpenCare.\xa0 Thanks!
', u'post_id': 33727, u'date': u'2016-08-25 08:49:08'}, {u'user_id': 3, u'title': u'Open source and DIY tools as the future..', u'comment_id': 33766, u'content': u'Hi @Moushira, long time no seeing! Reading your post about this\xa0case\xa0also spotted by @Alberto a while ago (Hacking Diabetes) makes me think that between Night Scouts here, the connected diy insulin pumping device,\xa0open sourcing pacemakers\xa0and many others we\'re slowly discovering,\xa0making people autonomous with respect to their health is only a matter of time and reach. And it\'s not just vanilla self-assistance, this is real medical treatment.
\n\nIt would be great to be able to contact\xa0one of the Night Scout community members (users), do you know someone or should we try to get in touch and invite them to OpenCare? We can do this by\xa0offering\xa0a\xa0writing fellowship opportunity. Let me know!
', u'post_id': 33727, u'date': u'2016-08-14 17:59:52'}, {u'user_id': 4, u'title': u'"Community"?', u'comment_id': 14616, u'content': u'Welcome, @Oana_Geambasu !\xa0
\n\nGreat initiative. I am curious about your community: is the community actually delivering part of the therapy? Or is it the therapists delivering the therapy, withthe community playing the role of informing the families seeking therapy?\xa0
', u'post_id': 723, u'date': u'2016-08-27 09:59:24'}, {u'user_id': 3333, u'title': u'That is a brave innitiative', u'comment_id': 6881, u'content': u'Congrats, @Oana_Geambasu \xa0!
\n\nI would like to know more about it. How do the families learn about your NGO? Does the medical stuff tell them or else?\xa0
\n\nHow many children benefit from cochlear implants in Romania, is it something the state offers or do the parents search for private solutions?\xa0
', u'post_id': 723, u'date': u'2016-08-25 07:58:02'}, {u'user_id': 4, u'title': u'Just to say', u'comment_id': 20058, u'content': u'... that I resonate with the community approach. Care is about relationships, not artifacts. Well done @Rozina .
', u'post_id': 716, u'date': u'2016-08-27 09:12:12'}, {u'user_id': 3293, u'title': u'Care to join the Open&Change Workshop in Brussels', u'comment_id': 15721, u'content': u'Hello Rozina,\xa0
\n\nreally nice to read about your approach to redesign communities and to get more involvement on a local level. Great that such initiative gets the respons of the local autority. Would you be interested to share your story at the Brussels Open&Change Workshop, it would be nice to hear your story and share it with other people to craft new durable solutions out of it. You can find the mapping of all contacted persons that i did at the moment here:\xa0https://metamaps.cc/maps/2175 , and you can contact me through mail if you want to discuss further.
\n\nevent page:\xa0https://www.facebook.com/events/280924708934187/
\n\nKindly regards
', u'post_id': 716, u'date': u'2016-08-17 13:00:33'}, {u'user_id': 2569, u'title': u'Absolutely', u'comment_id': 12578, u'content': u'Hi Rezina,
\n\nPlease feel free to reach out if you need me. I can also link you in conversation to my Dad who has a much more detailed and in-depth knowledge of the whole system here in the UK.
\n\nAlex
', u'post_id': 716, u'date': u'2016-08-20 12:54:39'}, {u'user_id': 3368, u'title': u'Hi Alex,\xa0\n\nThanks for your insight and your positive ', u'comment_id': 11534, u'content': u"Hi Alex,\xa0
\n\nThanks for your insight and your positive comments.\xa0
\n\nYes, I agree that it's best to run the BID projects with the BID task force community rather than soley relying on the politicians to lead. Although, at the moment it's still quite challenging for politicians here in Belgium to change the cultural mindset of opening up to public/private/citizen partnerships. Hence why some initiatives have been at grass roots level with the community itself. I sincerely hope this will change over time.
\n\nI have linked to many of the UK BIDs and they have been incredibly supportive. Also, recently in Edinburgh there was the World Towns Leadership Summit, in which one of the organizers was BIDs Scotland along with IDA of Northern America. It was incredible to hear the stories of what some of the partnerships had indeed achieved in their communities. From Capetown to Copenhagen, it was quite an eye opener.\xa0
\n\nI hope you don't mind if I reach out to you, with your experience and knowledge of the BIDs in your area in the future.
\n\nThanks again!\xa0
\n\nRozina\xa0
", u'post_id': 716, u'date': u'2016-08-17 11:33:26'}, {u'user_id': 2569, u'title': u'Hello Rozina,\n\nThank you for sharing the story with ', u'comment_id': 7852, u'content': u'Hello Rozina,
\n\nThank you for sharing the story with us. It seems that you have many great ideas about how to improve your local community.
\n\nI have much experiene of the BID structure myself as my home town of Bedford in the UK was one of the first to adopt the structure and my father was the Director of the Board for many years before standing down last year.
\n\nFrom a personal note we found that the local council/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently\xa0demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.
\n\nIt is much better for the BID groups to be politically autonomous and to save the time and energy of local politicians and civil servants. This way you get to use that time and energy on BID directed outcomes, rather than them spending it all in discussion and meetings. It really does help get things moving!
\n\nI wish you all the best for you other initiatives too. Your aims are very laudable.
\n\nAlex
', u'post_id': 716, u'date': u'2016-08-10 10:24:53'}, {u'user_id': 4, u'title': u'MIT', u'comment_id': 7397, u'content': u'Anna Young is MIT D-Lab. I tried to find a page for the organisation pushing Solarclave, but it\'s kind of elusive. Officially it\'s Mujeres Solares de Totogalpa, in Nicaragua (now a cooperative) but their website\xa0does not mention Solarclave at all. Should we try to find these people?\xa0
', u'post_id': 719, u'date': u'2016-08-27 09:06:02'}, {u'user_id': 3331, u'title': u'Yet another good idea to try', u'comment_id': 33798, u'content': u'Looks promising\xa0@Moriel\xa0and the @Noemi\xa0triggers me. Have you implemented this on the playgrond yet? I have seen many \'seating\' swings and ask myself how yours compete with existing solutions.It could be of interrest for a participant in\xa0WeHandU, what do you think?
', u'post_id': 33742, u'date': u'2016-08-25 11:17:43'}, {u'user_id': 3, u'title': u'What has been the response?', u'comment_id': 33788, u'content': u'@Moriel hi! I managed to miss this\xa0update of yours.. I wouldn\'t worry about accessibility though, although interesting distinction! Disabled children\xa0are anyway accompanied all the time, so there would be\xa0someone who can carry them outside the wheelchair and to the swing.
\n\nI was browsing the Hacking Utopia site and came across your latest work - so you ended up settling with memory foam.\xa0Did you manage to assemble a prototype for the exhibition? and if so, what was the response?
', u'post_id': 33742, u'date': u'2016-08-07 14:28:31'}, {u'user_id': 4, u'title': u'Super-interesting', u'comment_id': 33758, u'content': u'"Inclusion and accessibility are two different topics/areas". This is a really interesting intuition.
\n\nBut... you forgot the picture! You can edit the challenge response to add it.\xa0
', u'post_id': 33742, u'date': u'2016-06-18 10:08:27'}, {u'user_id': 3, u'title': u'Another way is learning the language of their destination', u'comment_id': 17007, u'content': u'I see, well can\'t say I\'m surprised it\'s difficult to measure, especially if people are transiting.
\n\nYou may know of this already, it seems different services for refugees would start offering spontaneous language classes like this Baobab centre in Rome, which I\'ve come across in another article. Basically you\'d have German volunteers teaching people transiting via Roma some basic language in order to be better prepared by the time they reach Germany: she was saying that "teaching them German (or anything else, really) gives meaning to the time they spend here." I found it ingenious and\xa0practical. The original reference is here.
', u'post_id': 515, u'date': u'2016-08-24 17:10:25'}, {u'user_id': 3324, u'title': u'self-organized!', u'comment_id': 14084, u'content': u'\n\nSorry for my late reply!
\n\nThe question if it could be better to be self-organized it\u2019s a well-known question for us. It could be easier for some extents, but at the end we understood that it\u2019s really important to have a \u201cneutral\u201d coordinator, that it\u2019s not a service provider of Italian courses. \xa0The coordinator is the Immigration Office of the City of Milan and so a service that tries to help migrants in general, in many ways (jobs, social benefits, reception centers..). So this view is interesting because permits to have an holistic view of the person. But the question remains open...
\n\nThere is a kind of self-organized network of schools, \u201cScuole senza Permesso\u201d (\u201cSchools without documents\u201d), but it represents only a particular kind of schools.
\n\nAnd yes, a lot of teachers testify that it\u2019s really useful for their job to be in contact with other schools, teachers and approaches, but it\u2019s not so easy to register the results of an improvement in the quality of teaching. This is because you need to have data about the situation before and after, in order to register the gap and there are a lot of other factors that can influence your way of teaching.
\n\nFor all these reasons what I could say it\u2019s that there are refugees and asylum seekers happy to have had an Italian class also in August (because of Italianostranieri Community), but it\u2019s not so simple to measure the improvement\xa0in the\xa0quality of teaching and I think also that it\u2019s a long-term effect\u2026but for sure it could be great to work on it\u2026
', u'post_id': 515, u'date': u'2016-08-24 14:53:49'}, {u'user_id': 3, u'title': u'Something which escaped my mind', u'comment_id': 10365, u'content': u'I am wondering if the\xa0community would have gotten better if it was organised by the\xa0groups in question\xa0instead of the municipality.
\n\nWhen talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?)
\n\nBut did it become easier to\xa0learn\xa0a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?
', u'post_id': 515, u'date': u'2016-08-01 09:47:43'}, {u'user_id': 1003, u'title': u'coool ', u'comment_id': 14042, u'content': u'Lucia @lpigini thanks for sharing
This is really really cool.
', u'post_id': 5838, u'date': u'2016-08-24 07:51:34'}, {u'user_id': 4, u'title': u'"Appropriate technology"!', u'comment_id': 8740, u'content': u'Our friend @LucasG has this concept of appropriate technology, which means "as simple as possible". It seems that Willkomm has hit on much the same idea. A lot of the appropriate tech is detailed here:\xa0http://www.appropedia.org/Welcome_to_Appropedia
', u'post_id': 5838, u'date': u'2016-08-15 12:34:39'}, {u'user_id': 3331, u'title': u'Response to Marco', u'comment_id': 33426, u'content': u'Thanks @Noemi\xa0for helping me out on responding\xa0@markomanka.
\n\nI\'ll try to go through the points\xa0
\n\n*\xa0The transformation of cronic patients into makers is scientifically documented.\xa0Something like 50% of patients have been creating an innovative solution for their health problem (SocialMediaWeek Milan 2016) but, either I don\u2019t understand what you mean by \u201astimulus to personal studies\u2019 or I strongly disagree. Production of the device should simply be a joyful and possibly a beneficial process. Avoiding personal defeat is ethical top priority.
\n\n*\xa0What you say about \u201abypassing\u2019 is actually the reason for hacking -\xa0for opencare. Once you certify your product is \u201afrozen\u2019. Yes it\u2019s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https://edgeryders.eu/en/fes-for-foot-drop). You can\'t meet individual requirements because youll lose certification.
\n\nHowever you have a point. Help us to find a way to ennsure that this is legal and how participants can be ensured in case of accidents. Please?
\n\n* Responsibility and lawsuits. I can see you are a lawyer mind so please help out on this point? (Yes the idea is that the paricipant is fully responsible) How does the makerspaces go about this issue (@Costantino)?
\n\n*\xa0\u201aDisabled ones\u2019 are in this case people, the participants, looking\xa0for a alleviation for lack of body function. In contrast to established health care (\xa0were the patient is often a passive receiver patiently waiting for ....), the WeHandU (see above reply)\xa0philosophy is NOT to decide what is best for a patient.\xa0Rather a person living with an impairment is looking for a way to resolve that HE/SHE considers a problem and hopefully resolve/alleviate it in a creative environment\xa0(I am often contacted by such people). The \u201anot-patient\u2019 but participant is... a participant. People not \u201awanting any aid\u2019 (and they are most) will not come in WeHandU.\xa0(BTW. Disabled people is not existing in the modern vocabulary)
\n\n*\xa0Solutions not marketed is\xa0a complex one. As graduate student I believed (was taught) that if it works it will be sold. That\u2019s not the way of business. Healthcare is business. Hard cold \xa0business. A businees where 90%\xa0 of the healthcare budget is spend on a solution that does not work. 90% (EU data) is spend on treating cronic diseases. Why are they cronic? Because the cure we are paying is not working... ok I\u2019m being cheeky here \xa0\xa0
If you study the dropped foot stimulators, invented 50 years ago, there is a ton of scientific work that demonstrates efficiency. Its provided by NHS in england, but not in the rest of europe. Why?
\n\n*\xa0Optimistic research. No, rather pragmatic -\xa0If something does not work try something different. The different is to eliminate the last variable (confounder is the term) not yet controlled in 50years of research: FAILING INSTITUTIONS (article on edgeryders).
\n\nWhat would you suggest as a cut off for a clinically relevant change?
\n\nHow many people regaining some hand function? How many people walking yet some years before they end in a wheelchair? Would 10 suffice or do we need 100.mio (A cervical spinal cord injury cost society approx. 1mio$/year)\xa0
\n\nWhat if\xa0one of them was you? Would the existence of\xa0WeHandU space be justified it it could preserve you some personal independence?
\n\nWe have a choice here: continue spending millions on research refining (reinventing) technology (http://www.eurekalert.org/pub_releases/2016-01/kf-kfa010716.php). Promising technology\xa0that has not been marketed or clinically relevant for many years?
\n\nH0: We can demonstrate that it is useless by testing the last hypothesis (which is that OpenCare approach can solve the \u201amarketing\u2019 problem).
\n\nWhat do you propose?
', u'post_id': 516, u'date': u'2016-08-21 04:23:40'}, {u'user_id': 1003, u'title': u'WeMake will back it', u'comment_id': 29069, u'content': u'So, the conversation with @rune is going on since some time now.\xa0
\n\nAs WeMake I\'m pretty conviced to back this project in the opencare realm.\xa0
\n\nWe\'re in the process of understanding the possible implementations but we\'re totally in.
\n\n@marcomanca I think that many of the issues discussed above should be digged more during the workshop @cern \xa0
And here is the latest attempt to bridge the gap
\n\nhttps://edgeryders.eu/en/wehandu-maker-space-for-developing-solutions-for-cases-of-motor
', u'post_id': 516, u'date': u'2016-08-23 11:35:24'}, {u'user_id': 3331, u'title': u'Legal issues', u'comment_id': 26026, u'content': u'What @markomanca says about safety and legal issues is important and needs some opencare attention. I\'ve started this section in the invitation letter (it\'s not the right place but my best shot)
\n\n\n\n\nMaybe you could elaborate?
', u'post_id': 516, u'date': u'2016-08-21 08:43:17'}, {u'user_id': 3, u'title': u'How much access is real access than?', u'comment_id': 25080, u'content': u'Thanks Marco, many money quotes in your comment !!
\n\nMy understanding of Rune\'s post is that\xa0research admittedly needs to be refined\xa0("as long as assistive technology is not used it\u2019s difficult to identify exactly where to improve it") in ways that are more just to the users than current commercial research and the incentives that exist in that space.\xa0Since research lab +\xa0home brewed medical inventions and\xa0tools exist already and provide healthy tinkering and reflection\xa0around problems, then the easier question is then how to enlarge access\xa0to this kind of knowledge, enable more people to be players.\xa0More access could mean better quality and approach to safeguards, and then markets (should) follow. Hopefully before research and money go\xa0down the drain or results made irrelevant.
', u'post_id': 516, u'date': u'2016-08-18 07:00:26'}, {u'user_id': 854, u'title': u'I would like to start from the bottom...', u'comment_id': 23523, u'content': u'\u200bThank you @nadia for pointing this out
This is an interesting post, touching on a number of open questions, some receiving partial implicit answers in the same text, others remaining open at all.
\n\nI would like to start from the bottom of it. Transforming patients (or their closest carers) into makers is an interesting perspective. We know from citizen science that this first hands involvement often offers a stimulus to personal studies, and reflection about the identity of the problem, and the problem holder. One could argue this is an even more important potential benefit than the access to the devices in itself.
\n\nHowever, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be "ok, let\'s ignore this step and bypass it".
\n\nThere are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents\' costs, etc on the side of providers).
\n\nOf course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that\xa0is almost\xa0"ethical": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as\xa0gut feeling here, but I am open to discuss it in depth later)\xa0the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final "accidents" that will always happen (only that which does not work, will not break).\xa0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model "exploitative", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.
\n\nSo, what would be the general ecosystem\' services that would keep this garden grow orderly? I don\'t see this answered (that\'s not an easy one,\xa0indeed)
\n\nResearch, and "citizen science", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.
\n\nFor the sake of our understanding, let me be pedant and allow me to stress that\xa0disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status.\xa0A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a "because".
\n\nI would like to not dig too deep in the question about why the current "solutions" are often not marketed/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let\'s be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don\'t normally ask themselves questions like "how long will this work continuously?", "what will be the safety mechanism once it turns off, as instance because of battery exhaustion?", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?",...
\n\nLet\'s not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter "being poor means having too much end of the month"... it may steal a smile, but it\'s a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.
', u'post_id': 516, u'date': u'2016-08-08 10:37:26'}, {u'user_id': 3, u'title': u'I hope Eirini reads this', u'comment_id': 19857, u'content': u'It just occured to me that @eirinimal could be interested in this piece on resistance to cheap hitech assistive devices. Did your company get to work in the\xa0medical system per se or are you mostly marketing outside of it?
', u'post_id': 516, u'date': u'2016-08-08 07:07:16'}, {u'user_id': 3331, u'title': u'Barter economy', u'comment_id': 17893, u'content': u'Head on \xa0Alberto. How can this voucher be implemented in an efficient way. Are there some tools?
\n\nOur proposal is that it should be an \'association\' of participants (the patients), mentors (patients who done it) and facilitators (e.g. us-researchers, clinicians, etc....)
\n\nParticipants come and see if WeHandU has a solution \xa0that solves the problem. If yes, then they becomes associates with a moral obligation to become mentors (helping newbees). This part should be free. Eventually facilitators time has to be payed in some way (It\'s probably impossible to convince a professional therapist\xa0to work for free)
\n\nAre there some projects we can learn from?
', u'post_id': 516, u'date': u'2016-08-21 02:24:06'}, {u'user_id': 4, u'title': u'Like that', u'comment_id': 16243, u'content': u'Good piece! It seems you are saying that, while pathology might lend themselves to classifications,\xa0patients are all different (@markomanka always says this). My diabetes is different from yours, because you are not overweight and I am, etc. This calls for small batch solutions rather than cookie-cutter solutions. Makers are efficient at small batch, industry is efficient at cookie-cutter. So, for health care, it should be makers.\xa0
\n\nIt should not be so difficult to set up something like a voucher system for disabled people. You\'ve got a condition? Here\'s your voucher, head off to your local makerspace, someone will talk to you. There\'s a condition, though: you\'ll need to be an active participant, not a passive consumer. You\'ll need to help with design, testing, providing feedback. In other words,\xa0you will need to join a community of makers. Your exact role will depend on your skillset and enthusiasm: the harder you work, the better the outcome solution will fit your particular condition.\xa0
\n\nRight?
', u'post_id': 516, u'date': u'2016-07-27 08:44:49'}, {u'user_id': 3331, u'title': u'Organizations', u'comment_id': 11841, u'content': u'Good point on the organizations @Noemi.\xa0I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there.\xa0Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It\'s clear that they don\'t have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?
\n\nRegarding\xa0@Costantino, I have been airing the idea of making a \'neuroprostethics\' hacking event. We need the right subject (patient), a clinician (OpenCare type) and clear some formal\xa0issues. Some people that I had in mind had to drop out (for logistic and\xa0health problems).\xa0
\n\nIn this hacking event we will help a person to create his/her neuroprosthesis to recover hand or foot function.\xa0This could be a kickoff workshop for a project the we call WeHandU - a hackerspace for people with spinal cord injury,stroke, multiple sclerosis. It fits perfectly to a 100k grant coming up in september, but we need to recruit paricipants before time runs out.
', u'post_id': 516, u'date': u'2016-08-21 02:13:09'}, {u'user_id': 3, u'title': u'Whoa. What about patients associations? ', u'comment_id': 9562, u'content': u'Very insightful piece, \xa0thanks Rune. When writing OpenCare we were inspired by the story of a visually impaired person in Milano building his own self standing cane as an everyday support for various tasks requiring both operative hands.\xa0He did this in a makerspace. @Costantino, are you guys at WeMake seeing collaboration with researchers in similar cases? Or are there events which can aid that?\xa0
\n\nReading carefully the above, \xa0there\'s one thing that strikes me: how come patients associations don\'t lobby for provision of assisting technology outside the formalised hospital care? Isn\'t this the kind of thing that they would be best at, being on the organised patient and consumer side?\xa0
', u'post_id': 516, u'date': u'2016-07-26 13:48:00'}, {u'user_id': 3331, u'title': u'@ChristineOehme\xa0being the only therapist I could find in ', u'comment_id': 19644, u'content': u'@ChristineOehme\xa0being the only therapist I could find in OpenCare id like to get your opinion about what would be the best way to access and invite people with certain physical disabilities to partecipate in active selfrehabilitation like WeHandU?
\n\nAnd also how we could get a local physio onboard?
', u'post_id': 675, u'date': u'2016-08-23 13:39:10'}, {u'user_id': 3, u'title': u'We are all broken and emotionally damaged.', u'comment_id': 16916, u'content': u'Hi @ChristineOehme and welcome on board! You might\xa0want to read @dennis on this same approach - learning about\xa0not belittling anyone through language or actions (even unintended). His story is called A New Chapter in Other People\'s Story Books
\n\nYour intuition about needs we all have is also spot on.\xa0I was reading the other day a telling piece on Medium explaining how\xa0"most humans alive right now are broken. Our communities have been stripped of gathering places. We find ourselves isolated and alone, with heads in the digital cloud and eyes fixed to the screen. We are not ready to look one another in the eye. The shame we feel as we strive to do everything right (the way we were taught) \u2014 as we fail to get jobs, are unable to keep up with growing rental prices, and are displaced increasingly from our homes \u2014 that shame and humiliation is why we don\u2019t come together." @joe_brewer/a-social-movement-for-broken-people-104d53179eb6#.bkmvqij7h">(source)
\n\nThe author\'s thesis is that we can\'t provide care for others until we regenerate ourselves. I have to say, I find it hard to disagree.\xa0Any thoughts?
', u'post_id': 675, u'date': u'2016-05-03 10:17:59'}, {u'user_id': 4, u'title': u'Labels', u'comment_id': 10562, u'content': u'Hello and welcome, @ChristineOehme!\xa0
\n\nThis is a recurring theme in Edgeryders. The whole social cohesion industry is based on the notion of "vulnerable groups". People belong to such groups if they bear the markers of some kind of disadvantage, for example the dark (or light) skin of an ethnic minority, or a physical or mental disability. Belonging to vulnerable groups can be temporary: for example, there is a group called "the unemployed", thought to merit special care, even though no one is born into this group.\xa0
\n\nLike many people around here, I dislike the notion. There are two problems:
\n\nRight now, we are seeing the damage done by this concept in the so-called migrants issue in Europe. A Syrian doctor (or engineer, or carpenter) is labeled a refugee and stuck in a camp, where another doctor (European) will assess his health. He might be ten times more experienced than his European colleague, but he is not allowed to diagnose himself and others because \u2013 guess what \u2013 in that context he "is" a not a doctor, but\xa0a refugee.
\n\n@Alex_Levene told me a funny-heartbreaking story from The Jungle (check out\xa0his post, it\'s really interesting). He talked to an Afghan guy in the camp. He fled Afghanistan because he is an atheist, and that\'s led him\xa0to trouble. He wants to live in a place where agnosticism is common, bigotry can\'t touch him\xa0and nobody cares what you pray to. And there he is, in a refugee camp,\xa0surrounded by muslims, and everyone goes to great lengths to do everything in a way that will work for muslims. They assume that, since he is Afghan and the average afghan is muslim, he must be muslim: when in fact he is persecuted by muslims.\xa0
', u'post_id': 675, u'date': u'2016-05-03 09:49:39'}, {u'user_id': 3331, u'title': u'Facts? Usercomments?', u'comment_id': 33797, u'content': u'Great idea @Moushira\xa0my Roomba has cost me 400\u20ac, worked 1 year, makes\xa0noise and now\xa0battery replacement (+100\u20ac). I\'m not so sure about cost/effectivenes you claim.
\n\nI\'d like to hear what a blind owner of a dog says? Usually people are quite fond of their dogs (and they climb stairs, go outside) Roomba dosn,t pass even small obstacles.\xa0
\n\nOr is this the typically technocrats way to care (my recurrent question to myself)? What does th blinds community say?\xa0
', u'post_id': 33743, u'date': u'2016-08-23 11:33:28'}, {u'user_id': 3, u'title': u'Embedded the video to see how the cane actually works', u'comment_id': 33757, u'content': u'Hi @Moushira, I took the liberty to add it so that it makes for an even better read!
\n\nWhile browsing the web quickly I\xa0came across several recent articles introducing different robotic canes (including one equipped with a camera invented by a 16 year old), all\xa0equally cheap to make, that are still\xa0presented as prototypes. Wondering how come this\xa0hasn\'t, many years after, become more widespread..\xa0\xa0
', u'post_id': 33743, u'date': u'2016-08-07 12:56:08'}, {u'user_id': 3331, u'title': u'ICF', u'comment_id': 21647, u'content': u'Exellent posts @Moriel,\xa0@Alberto, @Noemi. I just want to mind you of the ongoing work of international classification of function, a framework where all these things are being redefined. My personal opinion is that it\'s\xa0both good and bad. The bad part is that it devides people so we speak different languages. The good part is that it tries to teach us all to speak a common language. Within OpenCare it woudl be good to have some consensus about that.\xa0
\n\n@Moriel\xa0what do you think about\xa0https://edgeryders.eu/en/wehandu-maker-space-for-developing-solutions-for-cases-of-motor ? Would you be interested?
', u'post_id': 679, u'date': u'2016-08-23 11:31:18'}, {u'user_id': 4, u'title': u'A gradient', u'comment_id': 15498, u'content': u"Disability is a gradient. Some humans can run marathons in under three hours. Me? No. Does it mean I am disabled? No. But if you could run a marathon in under three hours, and then for some reason (age, lack of training) you lost that ability, you would feel diminished.\xa0
\n\nMoreover, disability is multidimensional.\xa0Is Stephen Hawking disabled? Yes, in a way. His body is weaker than mine. But if you look at brains, fame, achievements... \xa0who's the disabled guy here?
\n\nYet another example of when labels do not make sense.\xa0
", u'post_id': 679, u'date': u'2016-05-12 18:36:03'}, {u'user_id': 3, u'title': u'Playing with naming', u'comment_id': 8317, u'content': u'Well language is powerful, it carries and enforces assumptions even without someone intending to. It seems like there are few\xa0words we have as society\xa0to express care for those\xa0assumed\xa0to need it more than others - disability/ handicap/ disease. \xa0
\n\nMaybe they don\'t need more care than others,\xa0as we are all disabled in a way.\xa0We\xa0all fall under categories of the state anyway and at some point need "special" considerations -for example student discounts carry the\xa0same type of distinction: you are a student, therefore you have less money, therefore you need extra help to access some services. Yet we call it "discount for\xa0students" not discount for poor students.
\n\nWill keep thinking about this, and good luck with your design @Moriel.
', u'post_id': 679, u'date': u'2016-05-12 07:53:48'}, {u'user_id': 3353, u'title': u'RE: Food for though - evidence based', u'comment_id': 25187, u'content': u"There seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !?
\n\nOnce I searched medline (a database of scientific publications) \xa0to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' .
\n\nCan it really be that there is a enormous hole in healthcare research here?
\n\nCould it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?
", u'post_id': 711, u'date': u'2016-08-21 01:48:18'}, {u'user_id': 3353, u'title': u'Re: Connecting the (food) dots', u'comment_id': 22262, u'content': u'Hi Pavlos,
\n\nThank you very much for taking the time to reply to our initiative!
\n\nWe agree that a varied diet is of big importance to any of us (not only cancer-patients). Can you provide us with more information/sources of research concerning the variety that you are referring to?\xa0
\n\nA core aspect that needs to be considered specifically when talking about "anti-cancer" nutrition is that carbs and sugar should be avoided or reduced to a minimum because they "feed" cancer cells. What we are trying to say with this goes hand in hand with our comment on Noemi\'s post: to come across as a reliable and relevant source of information, the platform needs to state very explicitly what it is focusing on concerning nutrition, still at one point you have to choose a certain framework of aspects which build the basis of, in our case, the platform. No one can ensure a 100% holistic approach, but you can already get a lot further by having this intention. In the end research today might state that milk (just as an example) is bad for us and tomorrow another research might state the opposite. Its all about the framework that you define and the beliefs you formulate as a basis.\xa0
\n\nCarry and Denise
', u'post_id': 711, u'date': u'2016-08-20 18:05:08'}, {u'user_id': 3338, u'title': u'Connecting the (food) dots', u'comment_id': 20297, u'content': u'Hi @Denise Carry,
\n\nI think it is important to also focus on the important of digestion/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced/consumed). This is often forgotten (way too often, I\'m afraid), even by most "food fanatics" or "health hypers", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food.
\n\nTaking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas.
\n\nHow connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?
', u'post_id': 711, u'date': u'2016-08-10 14:05:58'}, {u'user_id': 3, u'title': u'Analysis layer for more credibility', u'comment_id': 18512, u'content': u'Having a platform where a lot of people talk to each other and share experiences that sometimes contradict each other is a lot like a forum, and making it difficult to arrive at sound advice. What would make it into\xa0real\xa0collective intelligence is research and\xa0analysis on nutrition. This\xa0would weigh a lot more than advice from a\xa0small groups of\xa0food experts (as Rune observes\xa0below). If you ever want to go that way and structure information online\xa0into a research dataset, or wish to include this in your support raising efforts, consider Edgeryders for partnering up.\xa0Alberto just wrote about how you can use network analysis and ethnography to analise texts and reach new knowledge that as a platform manager or\xa0user you can\'t readily see, especially if you have contributions in the orders of thousands.
', u'post_id': 711, u'date': u'2016-08-22 09:43:11'}, {u'user_id': 3353, u'title': u'Re: collective intelligence as cure for controversy', u'comment_id': 17838, u'content': u'Hi Noemi,
\n\nThanks for your reply, its much appreciated!
\n\nYou are definitely right about the controversiality of advice. Main cause of this is, in our opinion, the so-called island approach, where there is little space for a holistic view on the patient! Specialists tend to stay within the boundries of their area of expertise (even if the advice turns out not to be the best for the particular patient).
\n\nWe realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!\xa0
\n\nYour already helping by sharing your thoughts, opinion and experience. We are happy to learn more from experts and get in touch with people that can provide relevant advice!\xa0
\n\nCarry and Denise
', u'post_id': 711, u'date': u'2016-08-20 18:03:12'}, {u'user_id': 3, u'title': u'Collective intelligence as cure for controversy', u'comment_id': 16818, u'content': u'Nice to meet you @Denise_Carry, I\'m Noemi!
\n\nOne of the most schizofrenic thing about medical treatments is, in my opinion, controversial advice. I always tell myself that the moment I will have a real condition I will need to ask for many many opinions in order to be satisfied with recommendations.\xa0Even with the "healthy food" trends which\xa0you remark, it is becoming harder and harder to find truth or specialists with real credentials. If hospital dieticians are in the wrong, then the only way seems to be more access to information, and\xa0at some point the more accurate one\xa0is filtered in.
\n\nI like your approach, and maybe reading about other online communities could be useful to\xa0your design: for example another edgeryder in Benin is running awareness raising for cardio vascular diseases\xa0on a massive facebook group, but the reason they manage to keep it relatively uncontroversial, as far as I understood, is that: 1) they don\'t deal with curative or palliative care,\xa0only preventative and 2) they have moderators ensuring a healthy and accurate stream of information. This is their story.
\n\nAlso, how can we help?
', u'post_id': 711, u'date': u'2016-08-02 15:32:38'}, {u'user_id': 3331, u'title': u'The food paradox of hospitals', u'comment_id': 11833, u'content': u'As long as I remember we have been told to eat healthy /\xa0As long as I remember hospital food has had the reputation of being awful
\n\nAs long as I have been having my lunches in a hospital I\u2019ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc.
\n\nAs long as I have been having my lunches in a hospital the\xa0meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit.
\n\nSo starting at the hospital we are told one thing and given the opposite.
\n\nThe logical conclusion is that change should start at the hospital. It same goes for\xa0schools down to kindergardens.
', u'post_id': 711, u'date': u'2016-08-21 01:32:46'}, {u'user_id': 4, u'title': u'Brilliant stuff!', u'comment_id': 9737, u'content': u'This makes a ton of sense. Everyone says that sport and healthy food are good for non-sick people: they should be even more important for people who are sick! I, too, lead\xa0a reasonably healthy lifestyle. I do not have cancer now, but \u2013 realistically \u2013 I will at some point. And I will want the same kind of advice that you also looked for.\xa0
\n\nI would totally support this idea! @markomanka , you are a doctor. Any thoughts?
', u'post_id': 711, u'date': u'2016-07-27 08:56:04'}, {u'user_id': 3, u'title': u'Add junkyards', u'comment_id': 11557, u'content': u'and you got yourself a\xa0Med Makers revolution \xa0
What a great idea!
\n\n"Toys have great supply chains", therefore they are cheap, despite not being cheap injection mould stuff anymore, despite having a significant engineering content.\xa0
\n\nAnd "you may not have the courage to take a part a 1,000 dollars medical device, but youy definitely have the courage to take apart something that costs 5 dollars."\xa0
\n\nConclusion: for DIY to really work its magic, things have to be cheap. The cheaper the better.\xa0
', u'post_id': 707, u'date': u'2016-07-20 19:16:04'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 12888, u'content': u'Undisclosed content', u'post_id': 684, u'date': u'2016-08-17 08:01:05'}, {u'user_id': 3, u'title': u'Bravo for campaign!', u'comment_id': 12503, u'content': u'@MarieScheurer @Cindy @HoneyMk well done! With Edgeryders members from all over we will spread the word, let\'s see if it helps the project.\xa0
', u'post_id': 684, u'date': u'2016-08-17 06:29:49'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 11135, u'content': u'Undisclosed content', u'post_id': 684, u'date': u'2016-05-28 10:24:07'}, {u'user_id': 3, u'title': u'It probably needs to happen seamlessly..', u'comment_id': 7835, u'content': u'Hi @MarieScheurer ! \xa0
\n\nI find that the proposition (for Germans) can make a difference: when you are asked to come and commit to do something and be responsible for it\xa0is different than when you are asked to join a social gathering, or simply have fun.\xa0
\n\nA proposition I loved was the one by Tonguesten (here on Edgeryders) - who are mixing language with culture, and frame it as being part of a community of language learners.
\n\nAny idea of why they are reluctant and don\'t want to feel obligated?
', u'post_id': 684, u'date': u'2016-05-28 10:07:38'}, {u'user_id': 4, u'title': u'Sharing plans', u'comment_id': 27803, u'content': u'Hey @Yannick , thanks for your patience in answering all these questions. The question by @Eric_Hunting reminded me of a previous experience with a project called the unMonastery. We had the problem of developing a physical space that was meant to connect to a broader community, and the community was physically far from the space.\xa0
\n\nWe discovered that publishing the plans made everything clearer and more concrete, and generated a lot of excitement and emotional attachment. People also started to suggest really cool ideas for furniture.\xa0
', u'post_id': 520, u'date': u'2016-08-12 10:15:05'}, {u'user_id': 8, u'title': u'Introductions maybe?', u'comment_id': 27640, u'content': u'Hello Eric, and welcome to Edgeryders.
\n\nIt sounds like you have some experience or interest in setting up this kind of space \xa0 Maybe consider introducing yourself to Yannick and/or the rest of the community in arrivals?
thank you for the in dept questionary.
\n\nWe started doing the bigger work in the building the last couple of weeks. We were happely surprised that the water problem didn't harm the wood that hard. On the first floor we have a sort of chill room that is used as a backstage for the bar downstairs as well, a multi media room with possibility to watch movies or have podcast sessions, a closed room for private meetings and a toilet. The second space is used as recording and repetition space at the moment, but will graduatily become multifunctional too. On the third floor we have a big open space with lots of natural light and a working plumbing system. The electricity has been cleaned and we are installing now new wires. We will install a kitchen in low tech design there and we still have space for other things. On the fourth floor we have access to a roof of 40m2 and also a ceiling that was renewed not that long ago, we only have some problems of mushrooms there that need to be taken care of. On the long term we hope to have complete green energy providers , solar is possible. But also trying to create a consience for not using to much energy. On the fourth floor we hope to bring a sauna, sleeping capsules and also an urban garden on the roof, all this is being analysed at the moment.
\n\nWe have 2 handy mans, a designer, a woodworker and an interieur designer helping in the house at the moment. We also have access to different FabLabs around Brussels that will come help us later on. We maybe going to try to contact the bellastock organization of brussels to work around the industrial resources.
", u'post_id': 520, u'date': u'2016-08-11 17:52:20'}, {u'user_id': 3369, u'title': u'Undisclosed content ', u'comment_id': 26029, u'content': u'Undisclosed content', u'post_id': 520, u'date': u'2016-08-11 14:52:04'}, {u'user_id': 41, u'title': u'Undisclosed content ', u'comment_id': 23836, u'content': u'Undisclosed content', u'post_id': 520, u'date': u'2016-08-11 22:03:35'}, {u'user_id': 3293, u'title': u'Thanks for the interesting links', u'comment_id': 20274, u'content': u'hello @dante i went carefully through all your links and was really impressed by all the data and information you found about the different situations in Brussels. I would like to discuss further and share some more insight. Are you around Brussels for the moment?\xa0
', u'post_id': 520, u'date': u'2016-08-10 12:43:15'}, {u'user_id': 41, u'title': u'Undisclosed content ', u'comment_id': 14783, u'content': u'Undisclosed content', u'post_id': 520, u'date': u'2016-08-10 06:55:08'}, {u'user_id': 3, u'title': u"No worries. It's all good and formatted.", u'comment_id': 10891, u'content': u'Thanks Yannick, looking forward to circulate this story!
', u'post_id': 520, u'date': u'2016-08-08 19:31:29'}, {u'user_id': 3293, u'title': u"i don't understand how to put it in the right categorie ", u'comment_id': 7176, u'content': u'sorry @noemi and @alberto i think it got in the wrong place again...
', u'post_id': 520, u'date': u'2016-08-08 15:43:36'}, {u'user_id': 1974, u'title': u'Coding offline', u'comment_id': 29371, u'content': u'@Alberto, RQDA uses SQLite database format. I\'ve started making a copy of all codes+annotations offline.\xa0
\n\nAnother thing I\'ve noticed: last year I\'ve mentioned that the\xa0https://edgeryders.eu/annotation/export lost about 10% of coded information: it returned just empty codes with no annotations associated with them. Now, I was going through all the coded material and I saw that some of the text that I definitely marked up before (the tags for that particular part of text are in the drop down menu) has marking no more. And it all happened after I tried to export annotations several times. Any ideas why this is happening?...@Matthias?\xa0
\n\nAnd than you both for your help!\xa0
', u'post_id': 5768, u'date': u'2016-08-11 17:21:07'}, {u'user_id': 4, u'title': u'The task at hand', u'comment_id': 28911, u'content': u'Just to measure up the task: is it the case that the SQLite file needs to encode:
\n\n
"Term ID" : "982" , not\xa0"Term ID" : 982If that is the case, I should be able to create the tables with the appropriate columns, then iterate on the Python objects and append records to the tables.\xa0
\n\nThis would obtain a legitimate SQLite file, but not sure if RQDA imposes additional constraints. Unfortunately, the link to the schema in the documentation (http://www.inside-r.org/packages/cran/RQDA/docs/RQDATables)\xa0 does not work anymore (leads to a Microsoft page??) and I have not been able to find an alternative.
', u'post_id': 5768, u'date': u'2016-08-12 09:08:44'}, {u'user_id': 4, u'title': u'I can try and look at the documentation of your code?', u'comment_id': 28902, u'content': u'But the only language that I know is Python. Sometimes it is possible to fix anyway, if the code is simple.\xa0
\n\nBut... Python. Of course there is a library that manages SQLite files; so a very high-level plan for option 2 would be to call APIs from a Python script, load all their content into objects, then store them as a SQLite file. Should not be too hard. especially with this tutorial. What do you think? This would make my work more reliable. I might still get stuck but it is much less of a shot in the dark.
\n\n(I am always amazed at the sheer mass of high quality information available around open source software. It\'s kind of a minor miracle.)
', u'post_id': 5768, u'date': u'2016-08-12 08:30:30'}, {u'user_id': 5, u'title': u'Would work, but fixing the bug is less effort then', u'comment_id': 28898, u'content': u'Option 2 may technically work indeed, and it is kind of documented in code / READMEs since I did the RQDA file conversion twice by now (once a script the CKEditor based prototype, once for OpenEthnographer). It\'s basically a SQLite file. Not too difficult to handle, yet also not that simple. But. Since your programming would duplicate most of the effort of what OpenEthnographer includes right now (with a bug), it\'s not really economical. We should just fix the bug instead, then. Maybe let\'s post a project on Upwork (formerly oDesk) and see who applies? Mmmh no then I spend more time giving instructions than I would need fixing this myself \u2026
', u'post_id': 5768, u'date': u'2016-08-11 17:19:36'}, {u'user_id': 4, u'title': u'Two possibilities', u'comment_id': 28885, u'content': u'There are two possibilities, @Inga_Popovaite and @Matthias .
\n\nFor example, this annotation is associated to the Term ID "982":
\n\n\xa0\xa0\xa0\xa0{
\xa0\xa0\xa0\xa0\xa0\xa0"node" : {
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Annotation ID" : "25",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Author uid" : "5,672",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Name" : "Inga_Popovaite",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Date created" : "Tuesday, February 17, 2015 - 08:59",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Date updated" : "Tuesday, February 17, 2015 - 08:59",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Entity_id" : "3,593",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Entity_type" : "node",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Quote" : "Over the centuries, nation states all over the world have developed or acquired control of assets of all kinds. [...]
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Tid" : "982"
\n\n\xa0\xa0\xa0\xa0\xa0\xa0}
\n\nTo find out what "982" means, you need to look up the codes JSON:
\n\n\xa0\xa0\xa0\xa0{
\xa0\xa0\xa0\xa0\xa0\xa0"node" : {
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"name" : "challenge: state struggle",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Description" : "Annotation classifications added by Open Ethnographer users",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"parentName" : "",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Term ID" : "982",
\n\n\xa0\xa0\xa0\xa0\xa0\xa0\xa0\xa0"Parent Term ID" : "0"
\n\n\xa0\xa0\xa0\xa0\xa0\xa0}
\n\nSo, it is "challenge: state struggle".\xa0
\n\nIf I had an example of the file type RQDA accepts, I would\xa0maybe\xa0be able to write a Python script that "eats" the JSONs and returns a RQDA file. Shall I try? Matt, do you have this stuff already documented somewhere?
', u'post_id': 5768, u'date': u'2016-08-11 16:15:32'}, {u'user_id': 5, u'title': u"It's a bug then", u'comment_id': 28855, u'content': u'Since the function provides a RQDA file to me, and did so for you last year, it must be a bug. Probably triggered by one of your annotations that is somehow different from "normally". (Not you fault obviously \u2026). I don\'t really have the capacity to dive into debugging this right now. How can we organize this then, @Alberto ?
', u'post_id': 5768, u'date': u'2016-08-11 14:54:03'}, {u'user_id': 1974, u'title': u'It was the first thing I tried, but...', u'comment_id': 28789, u'content': u'But all I get is this:
\n\n\n\n@Matthias, any suggestions what I could try?\xa0
', u'post_id': 5768, u'date': u'2016-08-10 00:00:53'}, {u'user_id': 5, u'title': u'Export URL', u'comment_id': 28627, u'content': u'@Inga_Popovaite , did you try the export URL https://edgeryders.eu/annotation/export to get the RQDA file of all your own codings. It should work, and in my case gives me a RQDA file (though ith no codings in my case).
\n\nThis is documented in the manual under "How to export a file for further analysis?", but admittedly it should get a UI element since it\'s a kind of "hidden feature" the way it is now \u2026
', u'post_id': 5768, u'date': u'2016-08-09 21:44:39'}, {u'user_id': 1974, u'title': u'Missing the old OE version', u'comment_id': 28229, u'content': u'I\'ve grabbed\xa0both json files to R,\xa0\xa0but I can not use them for analysis because there is no link between anotations and codes. I could merge them\xa0together if both would have corresponding IDs, but they don\'t (or is there something I am not seeing?). What happened to the first OE version that I used for the Stewardship project? Is it possible to activate it at least for a day or two\xa0so I could fetch the coded\xa0data from the Digital Festival and finish the analysis asap? Or should I look for different solutions and workarounds? I can\xa0redo all coding in rqda as there is not too much data\xa0-- codes would correspond to the ones online -- but then it beats the purpose of coding online. Any thoughts or/and\xa0suggestions\xa0@Alberto, @Nadia, @Matthias?\xa0
', u'post_id': 5768, u'date': u'2016-08-09 21:00:32'}, {u'user_id': 4, u'title': u'rjson', u'comment_id': 27402, u'content': u'I am not familiar with RQDA, but there is a package of R to deal with json files. It\'s called rjson:\xa0http://stackoverflow.com/questions/2617600/importing-data-from-a-json-file-into-r
\n\n\xa0You might be able to save the annotations JSON from the API, open it in R through rjson and save it in a format that RQDA can digest.\xa0
\n\nWe will have someone (coincidentally also called Jason!) to work on OE starting September.
', u'post_id': 5768, u'date': u'2016-08-08 16:47:52'}, {u'user_id': 1974, u'title': u'Thank you! Another question: how do I import ', u'comment_id': 27202, u'content': u'Thank you! Another question: how do I import it to rqda for further analysis? Maybe @Matthias or @danohu could\xa0help me here?
', u'post_id': 5768, u'date': u'2016-08-06 19:07:09'}, {u'user_id': 4, u'title': u'APIs', u'comment_id': 26621, u'content': u'Annotations and codes (not just yours)\xa0are exportable in JSON format via API. See the post that started this thread for the two links.\xa0
', u'post_id': 5768, u'date': u'2016-08-06 08:27:04'}, {u'user_id': 1974, u'title': u'Fetching codes', u'comment_id': 23413, u'content': u'Hi @Alberto,
\n\nYes, you are right. I created the hierarchy outside of ER platform for the STF study (as there was no OE prototype then...)
\n\nI have a quick question: the ER website changed quite a lot since the last time I used OE. How do I download a codeset after I finish tagging?\xa0
\n\nhttps://edgeryders.eu/en/annotation/export does not work anymore (this is the link I used before, for the Stewardship ethnography). What should I try instead?\xa0\xa0And another thing: as Digital Festival is the second project tagged by the same author (me), will I end up with a dataset that includes all my tags (this + Stewardship?), or will I be able to separate the new ones somehow prior to downloading?\xa0
', u'post_id': 5768, u'date': u'2016-08-05 23:25:45'}, {u'user_id': 4, u'title': u'Good news, bad news', u'comment_id': 19679, u'content': u'Good news: the Drupal interface supports rearrangement of ethno codes (technically: of taxonomy terms, since our ethno codes are the terms of the OpenEthnographer vocabulary). Also, hierarchies are supported. I went as far as four levels deep, I suspect that there is no limit to how many levels you can add in the hierarchy. I have done the following:
\n\n
spotTheFuture term.actors and assets\xa0as category terms. The assignment is done navigating to the Taxonomy term page, clicking "Relationships" and selecting the parent node.actor:codename and asset:codename as codename , and selected actor and asset respectively as their parent node.\xa0Note that a code can be a child to more than one parent. This means that the hierarchy of codes does not have to be a tree. For example "environmental science" could be a child both of "environent" and "science". I have tested this on my test tag. THe result looks like this:\xa0
\n\n\n\nBad news: the codes for STF do not correspond to the code tree with the hierarchy that we produced in 2014. I think @Inga_Popovaite might have re-built the hierarchy outside OE. I will ask.\xa0
\n\nIn general, however, we will not need to have a hierarchy\xa0of codes that fans out from the project. There is no need. In fact, the whole idea of OE is that the codes can be shared across projects. When you want to grab a project from the API, you will use the annotations or the contentinstead:
\n\nBut in general, each ethnographer can\xa0use other ethnographer\'s annotations as a guide to finding more material on Edgeryders. For example, suppose I am coding a conversation and\xa0find people talking about debt. I might want to navigate to the "debt" code (taxonomy term) page, from there to annotations that encode "debt", and from there to the actial content where\xa0other\xa0ethnographers have found people talking about debt. This can be used as "parallax data" to give my research more debt.\xa0
\n\nTo enable this, codes should be "floating around", detached from specific projects and ethnographer. We will want to write guidelines for this: it\'s not so much about using a piece of software, it\'s about turning ethnography into a massively collaborative endeavour.\xa0
\n\nI made this visualization of the data model in OE, that illustrates the roles of codes and annotations.\xa0
\n\n', u'post_id': 5768, u'date': u'2016-08-05 15:44:00'}, {u'user_id': 2464, u'title': u'prefix instead of ids?', u'comment_id': 14000, u'content': u'Is that what you are saying? That these old ethno codes use text prefix to indicate child-parent relationship?
\n\nWhat I pointed at is that codes do not have an id (no id field contrarily to what your initial post says). This means we cannot link back from annotations (in the https://edgeryders.eu/en/openethnographer-annotations\xa0view) to codes (in the https://edgeryders.eu/en/openethnographer-annotations view) using the "Annotation\xa0ID" field.
\n\n?
', u'post_id': 5768, u'date': u'2016-08-05 07:22:27'}, {u'user_id': 4, u'title': u'Just bad data', u'comment_id': 10647, u'content': u'The view feeding the API is correctly configured. If you look at my test code, that was generated as a child of an existing code, you find it is reported normally.
\n\n\n\nThis is what I think happened: Spot The Future was done with an earlier, RDFa based-version of OE. It used text styles,\xa0not taxonomy terms, as a proxy for ethno codes. Since text styles are not per se hierarchical, the parent term was stuck in a prefix, so that the ethnographer would see all "actors:XX" close to each other in the style menu (only ethnographers would see these text styles, normal users could not see them).\xa0
\n\nWhat it comes down to is: we have two possibilities. Either we rearrange the taxonomy, creating parent codes (in this case: "actors"),\xa0and then\xa0assign all codes of type "actors:XX" to be children of those parents; or we just ignore this stuff and generate fresh codes. Unfortunately, as we discussed. to generate fresh data we need some coding work on OE...\xa0
\n\nTomorrow I will assess how much work I need to do to restructure STF codes. I will need\xa0something\xa0for the London conference, which by the way is confirmed and happening on September 15th.\xa0
', u'post_id': 5768, u'date': u'2016-08-04 16:43:48'}, {u'user_id': 2464, u'title': u'ID missing in the ethno code json file', u'comment_id': 6521, u'content': u'The title says it all:\xa0IDs are missing in the ethno code json file. We get things like:
\n\nnode: {
\n\nname: "actors: communities",
\n\nDescription: "Annotation classifications added by Open Ethnographer users",
\n\nparentName: ""
\n\n}
', u'post_id': 5768, u'date': u'2016-08-04 16:24:06'}, {u'user_id': 3338, u'title': u'The Centrality of Food', u'comment_id': 33823, u'content': u'There are hundreds of variations of how people relate to food in different cultures of the world. The actual format might vary from culture to culture, however humans have evolved to have their food in the centre of the dining community. This Centrality of Food is physical (eg. dishes in the middle and people sitting all around them), but also has many other connotations. For example, the power of food systems and food supply chains in influencing/transforming landscapes, economies, territories, habits and human health.
\n\nIn this article, I stipulate this idea on how improving the food system can regenerate an economy in crisis in my country, Greece: http://bit.ly/2a8WhLY.
\n\nOn the power of cooking and actually investing personal time in sourcing your food, there is a very nice explanation by Michael Pollan on why it matters: http://bit.ly/1alPAAX.
', u'post_id': 33739, u'date': u'2016-08-10 13:43:44'}, {u'user_id': 3, u'title': u'Food enterprise at LOTE6.', u'comment_id': 33822, u'content': u"Will keep the LOTE6 idea in mind, great one!
\n\nI think our future Open Clinic, in the form of which it can come out as our dream\xa0spinoff from\xa0OpenCare,\xa0will have a large food component to it.
\n\nWell, we never had an explicit conversation about food on edgeryders. In and of itself it's not actionable:\xa0everyone eats, a lot of people love it period. But because it can become an instrument of sorts\xa0it\xa0tends\xa0to pop\xa0up in conversations where you wouldn't expect it. It's a real resource:\xa0available, comes in\xa0handy and yet underpins\xa0complex relations. Moreover, if we think in terms of\xa0food enterprises around care - should we ever decide to support one (maybe a project in the making) - they already have\xa0a higher degree of sustainability embedded in it than most projects. \xa0
", u'post_id': 33739, u'date': u'2016-05-17 14:26:07'}, {u'user_id': 2569, u'title': u'Brilliant', u'comment_id': 33821, u'content': u"This sounds like a fantastic project!
\n\nPerhaps we could encourage them to get involved with the (potential) Food on the Edge section of LOTE6?
\n\nIt's really interesting seeing the ways in which food\xa0culture is\xa0feeding into the OpenCare project. It almost seems like the 2 areas are symbioticly linked.
", u'post_id': 33739, u'date': u'2016-05-17 13:03:55'}, {u'user_id': 4, u'title': u'Italy, too', u'comment_id': 33820, u'content': u'Agree with @melancon. And don\'t get me started about food culture in Italy, which is strictly regional rather than national.\xa0
\n\nNorthern Europeans seem to make less of a big deal of it, though.\xa0
', u'post_id': 33739, u'date': u'2016-04-27 16:30:15'}, {u'user_id': 2464, u'title': u'Food not a big thing in Europe ... ?', u'comment_id': 33816, u'content': u'As a former North American (left 25 years ago), I keep being flaggerblasted by how much food links people in France. Everywhere in France. I guess this is a country where everyone has a very personal perspective on how "blanquette de veau" should be made and is ready to debate about it even with the president of France.
\n\nFood market is where you go not only for food, but to meet people. In my village, the Saturday morning market deploys its fantasies before a magnificent mixed style Roman-Gothic Cathedral with teraces filled with people chatting and laughing. The Saturday market is is a favorite meeting point. Going to the market is the supreme alibi to act as a "cigale" (it\'s only now I realize there is no english translation for this word ...), enjoy the sun and spend time with friends. This is where you go to distribute flyers and mobilize people for your evening concert, or politicians distribute tracts and shake hands to get reelected, ...
\n\nThe evening my wife delivered my daughter, we were discussing wine tastings with the obstetrician. The thing French people bring back from the place they visited on vacation: food, to share it with others.
\n\nAnd do you know what French people\xa0talk about when they share a good meal: food, remembering the meal and wines they tasted together the last time ... I am ready to believe Germans prefer chatting about the weather. The French also talk about the weather, debating on how it will affect the harvest and quality of the next "mill\xe9sime" ...
Just as I had finished reading you post \xa0@Cindy_P. this piece of news floated past my feeds:
\n\n\n\n
@Cindy_P. are you looking to gather more projects about food? Should other people here in the community\xa0help by pointing you to interesting initiatives?
\n\nIdeally whenever you post a story make sure include a note asking for help, that helps others jump in with something you actually need
Just to add to @Alberto\'s last point: one of the most useful things about the paradigm of Traditional Chinese Medicine is that it can also be applied to food-as-medicine - without requiring a spare decade to study nutritional science!
\n\nA patient given a diagnosis (e.g. \'Excess metal constricting the breathing\', or \'jing deficiency\') can be treated with acupuncture and herbs, but can also adapt their diet to help reinforce those effects (e.g. eating more spicy food to open the lungs, or eating more dense, proteinous foods).
\n\nI understand this is fairly common practice in China, where the terms of the medical paradigm are well-established in everyday life and language.
\n\nRelevant to: the story I just posted on community acupuncture.
', u'post_id': 33739, u'date': u'2016-04-25 15:20:40'}, {u'user_id': 4, u'title': u'And in fact', u'comment_id': 33763, u'content': u'Hello and welcome @Cindy_P. Thanks for these reflections. They make a ton of sense not only to me, but, it seems, to a lot of people.
\n\n"Once a migrant has been processed and is "legalised" in Belgium there remains a wall between Belgians and newcomers. I was personally frustrated that I did not know any of them, and all my friends were white. Our idea is pretty simple, just share a meal, learn recipes and teach your own. We have now over 100 registrations, it\'s working OK but we need to grow."
\n\nWe\'re building the collective bid for the MacArthur Foundation\'s 100 million dollar grant with peers in several countries and I think you should be in it\xa0\xa0\xa0 http://tour.openandchange.care
', u'post_id': 5117, u'date': u'2016-08-07 09:28:19'}, {u'user_id': 8, u'title': u'Was too early at the time, but maybe shoot for a fellowship?', u'comment_id': 16500, u'content': u'Hi Laura,
\n\nI had managed to miss this as we were in deep preparation mode ahead of launching OpenCare. Are you up for trying something else? I have two suggestions to make
\n\n1) Repost the material from the kickstarter campaign in your post above (if you like I can do it for you). This will make it more appealing for an Op3n fellowship
\n\n2) I am just about to start pursuing a number of fundraising avenues including fellowships to support my own experimental work. We can collaborate on this if you like?
', u'post_id': 5117, u'date': u'2016-06-10 07:58:01'}, {u'user_id': 3, u'title': u'Fingers crossed', u'comment_id': 6898, u'content': u'Well done Marco, @Irene_Lanza\xa0& Henrik. And welcome on board to Irene, new Edgeryder.
\n\nI\'ve only heard of teaching echolocation "manually" via examples like Daniel Kish\'s ("Batman") school for children. And through handheld devices and more recently a mobile app (?), but those are mediating the environment, as you rightly point out. Kudos for the open approach, and thinking about community members who might be interested in this.
\n\nMaybe Alison Smith from Pesky People..? hm.
', u'post_id': 5117, u'date': u'2015-12-22 18:07:12'}, {u'user_id': 3165, u'title': u'autonomy ', u'comment_id': 17020, u'content': u'Extreamly interesting case\xa0Alberto, will make sure to read on it and include it
', u'post_id': 713, u'date': u'2016-08-06 15:06:12'}, {u'user_id': 4, u'title': u'Already posted. Now a challenge?', u'comment_id': 14083, u'content': u'I posted that a couple of months\xa0ago:\xa0
\n\nhttps://edgeryders.eu/en/opencare-research/a-challenge-on-autonomy-in-care
\n\nAt the time, I had proposed we roll out a challenge on autonomy and responsibility. Pre-welfare states (19th century), welfare was basically invented by European mutual assistance societies, in turn part of the workers\' movement. I imagine that, in the early days, these societies were small enough that the choice of treating someone would visibily drain the common pool of resources. So, in those days, maybe European factory workers thought a bit more like the Amish. A modern-day version of that, though I only know anecdotes about it, is implemented by @lasindias .\xa0
\n\nI think autonomy\xa0is also an interesting scenario in terms of policy, and fits well into @Lakomaa \'s and @Tino_Sanandaji \'s institutional economics framework.\xa0
\n\nMy summary from the article:\xa0
\n\n@lasindias has some recent experience of something similar. I will not go into details, if they feel they want to share they will...
\n\n@Susa and I\xa0had a chat with Glenn from the Woodbine collective in New York about their own approaches towards building autonomous and resilient communities. And they are especially interesting to me because unlike the Amish, they are in the starting phase. As Glenn described it a subgroup in the Occupy movement decided that they would focus their energy on teaching themselves, and others,\xa0to become self-reliant communities. They do this through a kind of structured learning program along tracks, when we spoke they were just about to start building the health track. Which reminds me, I need to get back in touch with them!\xa0
', u'post_id': 713, u'date': u'2016-08-06 06:43:02'}, {u'user_id': 137, u'title': u'Hey Jort, please add me on skype : ', u'comment_id': 29068, u'content': u'Hey Jort, please add me on skype : notwistgirl\xa0
\n\nI should be available some time tomorrow, just ping me;)
', u'post_id': 705, u'date': u'2016-08-01 15:39:39'}, {u'user_id': 4, u'title': u'Sure! ', u'comment_id': 28460, u'content': u'I am mostly available. Let\'s make an appointment on a private channel. Just go here: https://edgeryders.eu/en/user/34/contact\xa0(Edgeryders allows you to email members, while still keeping their email safe.\xa0
', u'post_id': 705, u'date': u'2016-08-01 18:50:53'}, {u'user_id': 3078, u'title': u'Interview', u'comment_id': 27800, u'content': u'Hi\xa0@Alberto and @Natalia_Skoczylas,
\n\nWould you be able to participate in an interview any time soon? I\'d really love to learn from your experiences and have your input for my dissertation. I\'m aiming to graduate at the beginning of september so if you could find some time to help me out soon that would be very much appreciated!\xa0
\n\nPlease let me know,\xa0
\n\nJort.\xa0
', u'post_id': 705, u'date': u'2016-08-01 14:52:24'}, {u'user_id': 3078, u'title': u'Thanks everyone!', u'comment_id': 26025, u'content': u'@Noemi, it was great talking to you this afternoon, thanks again. Your link will be of much help as well!\xa0
\n\nHi, @Natalia_Skoczylas, thanks for the reply \xa0I do have some specified questions, they\'re mostly related to why you are motivated to use the platform and what interactions happen on the platform. I can share them with you beforehand or simply talk them through with you over Skype. I\'d really appreciate interviewing you! Could you send me your e-mail address or send me an e-mail at jortklarenbeek@gmail.com?\xa0
And\xa0@Alex_Levene, thanks so much. Early next week should work out perfectly!\xa0Could you, too, send me your e-mail address or send me an e-mail at jortklarenbeek@gmail.com? The theories might sound a bit complex, but the interview questions should be fine!\xa0
\n\nHi @Alberto, I\'ve heard (and read) quite a\xa0lot about your work. Impressive, to say the least! Although\xa0Media and Entertainment is indeed a long shot away from network science,\xa0the platform can definitely be viewed from that perspective.\xa0In some way or another, media and entertainment can be related to anything. In the case of Edgeryders, I can\xa0reference\xa0your community work mostly to\xa0marketing strategies and theories, such as Kotler\'s Marketing 3.0, but also to\xa0theories on\xa0co-creation and brand communities. Noemi already explained to me that this perspective is not one on which you base your work (at all) here at Edgeryders,\xa0but the similarities\xa0are still there. I would really like to explain it a bit more detailed \'in person\' (over Skype) and possibly interview you. Would you be willing to cooperate?\xa0
', u'post_id': 705, u'date': u'2016-07-07 18:52:16'}, {u'user_id': 4, u'title': u'"Media and entertainment"?', u'comment_id': 23423, u'content': u'Hello @Jort_Klarenbeek , welcome. We are delighted that people want to study Edgeryders \u2013 I am doing so myself, from a network science perspective. But, Media and Entertainment? That\'s not how I\'d classify whatever it is we do. Are you sure we are the right subject for your studies?
', u'post_id': 705, u'date': u'2016-07-07 15:00:31'}, {u'user_id': 2569, u'title': u'Happy to help if i can', u'comment_id': 19678, u'content': u"Hi Jort,
\n\nAs Noemi said, i've been around on the Edgeryders platform for only a short time but i'd be happy to help you in any way i can. You might need to explain some of your theories and concepts as i'm more of an 'interested bystander' than a technical expert.
\n\nLike Natalia, i can fit a Skype session in during the day early next week. Let me know if you want to speak.
\n\nAlex
", u'post_id': 705, u'date': u'2016-07-07 10:15:19'}, {u'user_id': 137, u'title': u'Welcome @Jort Klarenbeek , I', u'comment_id': 14005, u'content': u'Welcome @Jort_Klarenbeek , I could help you out - do you have specified questions? I could find some time next week for a skype as well.\xa0
', u'post_id': 705, u'date': u'2016-07-07 09:40:43'}, {u'user_id': 3, u'title': u'Newcomers always sum it up better!', u'comment_id': 10602, u'content': u'Hi again @Jort_Klarenbeek!\xa0
\n\nNot sure if I sent this to you previously, but this post (should we incorporate?) from back when the organisation behind the platform was becoming\xa0an organisation and the debate in what was\xa0already a community is telling of the dynamics.\xa0
\n\nI already asked\xa0@Natalia_Skoczylas & @Alex_Levene if they want to be interviewed, let\'s see. Natalia has been around for a while, and Alex for less\xa0- so you could get different takes.
\n\nTalk to you later.
', u'post_id': 705, u'date': u'2016-07-07 07:23:19'}, {u'user_id': 3, u'title': u'Thanks for the precise clarification.', u'comment_id': 18052, u'content': u'Appreciated! I do hope @tamarafuma and researchers like you Rune can find a more and more powerful voice advocating for more suited tech\xa0- the arguments you listed in your other post\xa0seem solid, as well as the solution - [as I understood it]\xa0if they\'re too expensive and or\xa0not provided by hospitals, we have enough of advanced research to\xa0make them more available ourselves.
', u'post_id': 700, u'date': u'2016-08-01 09:38:35'}, {u'user_id': 3331, u'title': u'Dropped foot stimulation', u'comment_id': 16105, u'content': u'Many people surviving a stroke or living with multiple sclerosis are having difficulty of walking. Partly because they have lost control of the foot movement. When we walk we automatically lift the toes \xa0of the ground or we will have a dropped foot (left picture).
\n\n
The stimulator above is providing a more physiological way to correct this issue (right picture). The device is very simple and once the price was only around 300 euros. Now they have become quite expensive as @Noemi found out
Thank you for sharing this @tamarafuma, and welcome to OpenCare community.
\n\nI don\'t know much about FES, but looked it up on wikipedia.
\n\nAre you using a commercial device (I saw they are pretty expensive at 5-6000 USD)\xa0or did you\xa0find a cheaper variant?\xa0
\n\nIs there anything community members around here can help with? Let us know if you\'re looking to learn something specific or just to share your experience, and hopefully we can be useful somehow.
', u'post_id': 700, u'date': u'2016-07-01 10:18:37'}, {u'user_id': 4, u'title': u'Indeed a great story!', u'comment_id': 33810, u'content': u'"A human project, rather than a corporate one." Herein might lie one of they keys to open care. @Ezio_Manzini might have something to say here...
', u'post_id': 33744, u'date': u'2016-07-14 10:31:31'}, {u'user_id': 3279, u'title': u'Here is the scoop, from what I read...', u'comment_id': 33804, u'content': u'The initiative was taken over from the founder and a\xa0few volunteers from the Grey Dhaka group who took it on a pro bono project. Then teamed up with Grammen Intel to help teach the community to make them. Treating it as a human project rather than a copyright corporate idea. @Andra @Alex Levene @Noemi
', u'post_id': 33744, u'date': u'2016-07-13 16:46:40'}, {u'user_id': 3, u'title': u'Well, the founder is not here on the website', u'comment_id': 33799, u'content': u'..but maybe @Maria knows more?
', u'post_id': 33744, u'date': u'2016-07-12 10:56:39'}, {u'user_id': 3339, u'title': u'Thank you for sharing this wonderful and useful story!', u'comment_id': 33790, u'content': u'I honestly think this is a very interesting and practical idea. The ones involved in this activity didn\u2019t only help those people be more comfortable with the weather conditions from there. You helped the environment too. (Now I\u2019m thinking about the long time that it takes for plastics to biodegrade \u2013 such a well-known problem.) You basically killed two birds with one stone. I think this is the kind of initiative we all need to solve the problems around us. So happy for this! Well done!
\n\nAlso, are you planning to extend this project into other countries or regions? Do you have the resources? I\u2019m very curious.
', u'post_id': 33744, u'date': u'2016-07-12 08:59:11'}, {u'user_id': 2569, u'title': u'Amazing', u'comment_id': 33760, u'content': u"This is a fantastic and fascinating story.
\n\nI've already suggested this as a possible build project to help support people living in refugee shelters in Europe. I hope that we could find a way to implement it during the summer months.
", u'post_id': 33744, u'date': u'2016-07-11 23:25:41'}, {u'user_id': 4, u'title': u'But health care?', u'comment_id': 16610, u'content': u'@Pavlos , you absolutely rock \u2013 and thanks @Natalia_Skoczylas for sharing. I am intrigued by this:\xa0
\n\nPavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece.
\n\nCan you say more about these practices? I, for one, would be interested.\xa0
', u'post_id': 704, u'date': u'2016-07-05 08:22:16'}, {u'user_id': 3, u'title': u'Are the young agriculturers from two yrs ago still up& running?', u'comment_id': 12319, u'content': u'Thanks for sharing your short doc @Pavlos.. it does feel hopeful, looking at the young people taking on activities\xa0that traditionally were assigned to older, more rural populations, and mostly to see them taking on\xa0brand new skillsets. Where I come from (Romania) these small islands of change exist as well, but young farmers can\'t cater but for tiny markets. For the more traditional producers,\xa0we\'re talking subsistence agriculture and farming.\xa0With such small subsidies (someone in the video mentions 1500 eurs per year), how did they eventually manage? Notice I\'m asking this two years after the movie was made.\xa0
', u'post_id': 704, u'date': u'2016-07-13 15:03:24'}, {u'user_id': 3338, u'title': u'Greece is working out a Plan C for Europe.', u'comment_id': 11826, u'content': u'Definitely! There are several documentary crews coming over to Greece in the last 1.5 years with some really great questions.
\n\nHere is an example:\xa0https://www.youtube.com/watch?v=A0KNbKvYn5w
\n\nAnd here is my documentary "Farming on Crisis?" (2012), which shares the stories of young\xa0people returning to the land, in seek of ways out of unemployment.
\n\nI do believe that in the context of #Brexit, there are several interesting lessons to be learned from the social solutions prototyped by communities in Greece, what I like to call the "Plan C". Producing\xa0a positive, thoughtful documentary film for the transition process happening in Greece is an idea I am very keen in discussing further.
', u'post_id': 704, u'date': u'2016-07-04 09:18:00'}, {u'user_id': 32, u'title': u'Undisclosed content ', u'comment_id': 9577, u'content': u'Undisclosed content', u'post_id': 704, u'date': u'2016-07-02 17:10:32'}, {u'user_id': 4, u'title': u"Cool! What's the source?", u'comment_id': 7141, u'content': u'Hello Moushira, this looks really interesting. Where did you find it? Did you actually talk to Hugo or others in his team?\xa0
\n\nI ak because, in order to process this information into an ethnography, it is important to assess who is the source (the "informant", as ethnographers say), and how far removed he or she is from written text. More information is in our Data strategy.\xa0Especially p. 10-11 contain\xa0data quality-enhancing advice for cases in which the informant can\'t or won\'t themselves write their own story.\xa0
', u'post_id': 513, u'date': u'2016-07-09 18:51:43'}, {u'user_id': 3, u'title': u'Community call with Franca about refugee language learning', u'comment_id': 6985, u'content': u'This might be of interest to @Tomma @dennis @Liza @simon.messmer @Luisa @makerphil and.. well so many others
It seems to me a great idea. Maybe the community call could be like a \u201cWelcome door\u201d for the platform. In effect in these last days I read a lot of different stuff on the platform, different topics, a lot of comments, of comments\u2026
\n\nSo it could take a little bit of time to understand where and how to contribute.
\n\nSo if, at the end of the call, every one that is newcomer could have this link, this first post, he could start to write from there. Less confusing and more effective!
\n\nLet\u2019s try!
\n\n
Basically an update of what you have been doing over the past years, to make it more cost effective for you to get back on track. Someone will document and post it online straight away, without you needing to make too much effort. That way it\'s easier to find opportunities for you in OpenCare - right now I have no idea what your aspirations are related to care and communities (broadly understood).
\n\nSharing key stories could also be interesting, don\'t let me stop you.
\n\nLet me know eventually if you will make it on Monday, I created a new event with the same link as las time:\xa0https://meet.jit.si/opencare\xa0
', u'post_id': 5743, u'date': u'2016-07-07 12:06:14'}, {u'user_id': 32, u'title': u'Undisclosed content ', u'comment_id': 29134, u'content': u'Undisclosed content', u'post_id': 5743, u'date': u'2016-07-07 10:22:04'}, {u'user_id': 3, u'title': u'We talked about where Op3n Meetups fit in the engagement efforts', u'comment_id': 28487, u'content': u'Hi @Tiago and @Franca, this is for you and for those who couldn\'t make it to the call:
\n\nWith @Alberto @Costantino we got sidetracked from the actual discussions around Meetups Adventure due to some different opinions we have about how meetups would support the bigger community building efforts. In the OpenCare research project we have an engagement strategy to converge project activities by ER, WeMake and all partners into stories and conversations between participants which would take place on this platform. Those will become research data and will result in a report for our funder, the European Commission.\xa0
\n\nNow:\xa0we have a basic Engagement strategy based on our project proposal. You can read it here (it\'s very short and mainly to guide partners efforts).\xa0Where we are having difficulties is in implementing it - due to some technicalities with the funder and our own challenges to coordinate all efforts and support the OpenCare conversation, which is the researh engine of the entire project (we are mandated to drive\xa0"collective intelligence" around community driven care solutions). A lot of this is detailed issues.. not sure if this is the place for what could also be boring stuff for people not involved in the operational side of opencare.
\n\nWhat would be great as an actionable for me is to convene key stories to be told in the community calls and report on those with minimum effort online.
\n\nWe need to make it easier and cheap\xa0for people to share stories.
\n\nSo how about in the next community call we start with ourselves? Tiago, for you this is a quick way of fixing the\xa0time gap of your being away from ER
@Noemi! too difficult! I cannot hear anything and I was from a phone of a colleague.
\n\nI asked every kind of burocratical permission ... I hope to be able for the next time... sorry! :((
', u'post_id': 5743, u'date': u'2016-07-04 14:56:41'}, {u'user_id': 3324, u'title': u'@Noemi! Have you alredy started the call? ', u'comment_id': 24483, u'content': u'@Noemi! Have you alredy started the call?
', u'post_id': 5743, u'date': u'2016-07-04 14:26:48'}, {u'user_id': 3324, u'title': u'Thanks @Noemi\n\nThe page says "access denied. 403 error"... ', u'comment_id': 21237, u'content': u'Thanks @Noemi
\n\nThe page says "access denied. 403 error"...
but ok for Hangouts
\n\nsee you late!
', u'post_id': 5743, u'date': u'2016-07-04 12:01:06'}, {u'user_id': 3, u'title': u'It works for me..', u'comment_id': 17891, u'content': u'Keep trying and try also google hangouts. If the latter works we\'ll move there, just to make sure you can join
Dear @Noemi
\n\nIwould like to join the call but I cannot open the link https://meet.jit.si/opencare.
\n\nIs it normal? You can open the link only some minutes before?
\n\nI\'m working from a pc od the City of Milan and so maybe we can have some problems..
\n\nCould you help me? Thanks!
Franca
', u'post_id': 5743, u'date': u'2016-07-04 11:44:57'}, {u'user_id': 3, u'title': u'Some resources for local op3n meetups', u'comment_id': 9526, u'content': u'As we think about Op3n Meetups formats, here are two to consider:
\n\n1) Action oriented workshops - FeedForward methodology which we can apply by selecting snippets of stories from the online\xa0community and connect them with stakeholders in our cities.
\n\n2) Co-design workshops - the WeMake\xa0model documented in the opencare playbook\xa0-\xa0section How Can I Make a Workshop Happen? (thx @Costantino & WeMake!)
', u'post_id': 5743, u'date': u'2016-07-02 11:56:00'}, {u'user_id': 3253, u'title': u'Long waiting periods for getting help', u'comment_id': 15782, u'content': u"One important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment.
\n\nAs a first contact, the university counsellor\xa0was a good help. However, the number of appointments one\xa0can have with them\xa0is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time\xa0until they\xa0find someone they feel comfortable with.
\n\nI saw\xa0a doctor too, which did some tests to see that\xa0there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.\xa0
\n\nWhen you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy,\xa0this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning\xa0point where you decide\xa0that something needs to happen, that you need some kind of help now, because you don't know what to do anymore,\xa0and then you are told that the next possible appointment is in 8 weeks.\xa0
\n\nWhat am I going to do until then? Is it possible to somehow\xa0improve this process? What kinds of\xa0other temporary support structures might there be\xa0that could help\xa0people in distress?\xa0
", u'post_id': 677, u'date': u'2016-05-13 19:33:52'}, {u'user_id': 3, u'title': u'Found it! Why strangers are better healers.', u'comment_id': 13011, u'content': u're: my observation above. I was just listening to one of my favourite podcasts Invisibilia, and their latest episode talks about mental health patients and alternatives to\xa0failing recovery systems all over the world. Like some here already intuit, meaningful help can come from\xa0supportive community environments (interesting examples from a\xa0town in Belgium called Geel where families host "patients" for decades!, or\xa0housing sites in NYC with 40% mentally ill people living among the others).
\n\nA key takeaway for me personally is this: in a lot of cases what breaks how we think about mental illness is the belief\xa0that it needs to be fixed, that patients\xa0need to go back to some initial state of wellbeing;\xa0families, through proximity and attachment,\xa0are\xa0most prone to exemplify this in the daily lives of someone recovering after treatment -\xa0through a way of expressing emotions like 1) criticism 2) hostility 3) emotional overinvolvement. The mechanisms seem complex (can be subtleties, or\xa0just body language..), but it turns out that\xa0all 3 point to how difficult it is for family to accept and empathize,\xa0and only load too much pressure on the person in question.\xa0Strangers, on the other hand, do not really care THAT much and can be better healers because they "don\'t see you as a bundle of problems that need to be fixed".\xa0
\n\nBut: they do become kind of like a second family, so not complete strangers after all.
\n\nI looked up some of the original studies attesting psychocultural effects on mental recovery - pdf here.
\n\nHighly recommended.
', u'post_id': 677, u'date': u'2016-07-07 11:19:13'}, {u'user_id': 3253, u'title': u'Emotional Health', u'comment_id': 12885, u'content': u"I think the wording is a good point. Mental health\xa0to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available\xa0out there,\xa0how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further.
\n\nI'm looking forward to the online discussion on Monday, thank you for setting it up!
", u'post_id': 677, u'date': u'2016-05-13 12:38:55'}, {u'user_id': 3, u'title': u'Wording issues.', u'comment_id': 12389, u'content': u'This doesn\'t have to be a \'full-blown\' mental illness, but any thing that has weighed on them emotionally.\xa0
\n\n@Moushira suggested yesterday in our community call that engaging people to share their issues shouldn\'t be put under headers of "mental health" but under something more like "emotional health". Similarly, \xa0@Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness\xa0can contribute to lowering the threshold as mentioned above.
\n\nGuys, next Monday we are hosting an online\xa0conversation about emotional care, feel free to join in at 4:30 PM.
\n\nPS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.
', u'post_id': 677, u'date': u'2016-05-10 19:55:00'}, {u'user_id': 3253, u'title': u'Hi Noemi,\xa0\n\nthanks for getting back to me. I ', u'comment_id': 11003, u'content': u'Hi Noemi,\xa0
\n\nthanks for getting back to me. I definitively consider myself lucky and realize that I have a very strong support system. The thing that struck me was that even in my comparatively \'good\'\xa0situation, it was so difficult for me to communicate my feelings.\xa0For me, this\xa0was a huge added pressure and kept\xa0me from getting help\xa0for a long time.\xa0In our project group, we are investigating how young people, particularly in creative professions/fields of study, deal with issues of mental well-being, who they share their feelings with, or\xa0why they don\'t.\xa0
\n\nAs we are still in the research phase, I actually wanted to stay away from thinking of a very specific solution already. There is\xa0a similar\xa0site called emotionalbaggagecheck.com, where you can either submit your thoughts anonymously or help someone who submitted a text by sharing a song and some kind words.\xa0The platform I was thinking of was more an idea of improving the communication between affected people, so that there is a lower threshold of reaching out for support when you feel bad.\xa0I was hoping to hear what experiences other people have had, what sort of stressors they struggle with\xa0and how they handle this. This doesn\'t have to be a \'full-blown\' mental illness, but any thing that has weighed on them emotionally.\xa0
\n\nThis was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical)\xa0well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on\xa0mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.\xa0
', u'post_id': 677, u'date': u'2016-05-10 09:17:42'}, {u'user_id': 3, u'title': u"You're really lucky", u'comment_id': 7523, u'content': u'When I started reading your story I was already hearing the usual remarks people give - you know the worst thing to tell to someone who is depressed is "pull yourself\xa0together"; or "you have everything to be happy".
\n\nYet it seems your close friends and family did find a way to reach out, however ineffective\xa0or patronising,\xa0as any advice can\xa0be after all, which is not to blame.
\n\nWhat made you share this, @Pauline? What design do you have in mind for the mutual understanding platform you see as a solution? One initiative I came across while researching the web for the mental health debate in OpenCare is BlueHackers - they have an\xa0IRC channel\xa0they use where anyone can drop in for a random conversation.\xa0It could be that sharing with strangers is sometimes easier than with closer people, so you could be on to something. But maybe you\'re not thinking of online platform?
', u'post_id': 677, u'date': u'2016-05-10 08:34:30'}, {u'user_id': 3338, u'title': u'How to scale up regenerative food systems?', u'comment_id': 25245, u'content': u'I think the key lies on addressing the full spectrum of subsystems that effect food supply chains: physical - cultural - digital - logistical. It will certainly help if you get public procurement (ie.\xa0in urban areas) into the game, since their supply chains can really have a huge\xa0impact. In the EU only, every day there are 10 million public meals are served for free (hospitals, schools, jails, etc.), all paid by taxpayers money. This makes a strong case for asking for more organic, more local, more healthy, more climate-friendly. Our cities are going through a transition, and the hope is that as generational renewal is happening in city councils, this change will becoming more apparent.
', u'post_id': 702, u'date': u'2016-07-05 10:47:58'}, {u'user_id': 3293, u'title': u"that's the key i think ", u'comment_id': 24566, u'content': u'\'By this multilayered, multifaceted enterprise @Pavlos wants to change the paradigm. He believes that if the way we think about the time and space of food, meaning the time spent on preparation, growth, the human experience of food, it will have an impact on climate resilience, climate justice, biodiversity, water and soil conservation and will boost regenerative economies in rural areas. \'
\n\nReally love this way of thinking. Getting back in contact with the producers is one of the joys i found myself having the last couple of months. But how do you scale that up? Where do you set the time to deliver the knowledge to a lot of people? how can you coordinate that?
', u'post_id': 702, u'date': u'2016-07-05 09:07:44'}, {u'user_id': 4, u'title': u'Roger that', u'comment_id': 22689, u'content': u'I really sympathize with this approach @Pavlos . Do you plan to open source your method in any way, so that others can, as you say, be inspired by what you do?
', u'post_id': 702, u'date': u'2016-07-04 14:57:23'}, {u'user_id': 3338, u'title': u'Make!', u'comment_id': 22269, u'content': u"I have written to the maker from India, who told me that after the huge publicity they got last month (due to a short video going viral in social media) they could not start discussing a possible collaboration until October. One thing it that we cannot really wait, when there is such a huge demand/need already now. The most important, though, is that what we're trying to set up here is a positive example of closing the production/consumption/(non) waste loop by connecting small local actors that represent the links of this chain. Hopefully this will inspire more communities to think likewise, so I would say that the focus is on process design rather than the final product.
\n\nAdditionally, there is certainly extra (environmental)\xa0benefit from making\xa0the product locally, instead of transporting it from India. This would also require an import company, possibly also huge bureocracy from outside the EU. The whole idea of monitoring all the metrics involved can also be views as a social experiment, in our effort to better understand the lean economics of regenerative systems. These plate offer a pretty good use case, in my opinion.
", u'post_id': 702, u'date': u'2016-07-04 08:41:01'}, {u'user_id': 4, u'title': u'Make or buy', u'comment_id': 21169, u'content': u'Wow, interesting. But here\'s what I don\'t understand (and hopefully @Pavlos can help me here):\xa0
\n\nPavlos wants to recreate the whole system necessary for producing such a dish - an industrial designer who\'d made the moulds, a baker, ideally struggling to survive in the market, a flour producer, etc.
\n\nWhy do you think this is better than importing? If this is a value chain that can efficiently deliver the dish, a small (social) advantage can be had by locating it in Greece rather than India, but at the end of the day everybody else (Italians, Germans, Austrians...) would still be importing... from the company at the fountainhead of this value chain. Or is it a sort of \xa0open system, with each camp using open source knowledge to make its own?\xa0
', u'post_id': 702, u'date': u'2016-07-03 18:31:32'}, {u'user_id': 3, u'title': u'So the Edge of #FoodWaste is molecular consumption.', u'comment_id': 18141, u'content': u'Brilliant!
', u'post_id': 702, u'date': u'2016-07-07 08:56:36'}, {u'user_id': 3338, u'title': u'From Seed to Soil', u'comment_id': 17859, u'content': u'Most agencies/companies/communities etc, use the rather industrial/reductionist\xa0term "from farm to fork", thus missing two important aspects: "from seed to farm" (eg.\xa0biodiversity) and from "fork to stomach" (eg.\xa0digestion/human health & nutrition").\xa0I totally agree with the exciting proposal "from seed to compost/soil", as this would really close the loop (eg.\xa0recycling).
\n\nWhen designing menu concepts\xa0at\xa0We Deliver Taste, we have an acute focus on human digestion. This doesn\'t only have to do with the quality and transformation\xa0of ingredients (ie.\xa0the way a pasta dries influences the survival of certain enzymes that are beneficial to digestion and energy conversion in our body cells), but also taking into account different physiogeographic elements that are related to the kitchen (ie.\xa0how does temperature of the type of water in a certain location affects digestion)? When talking about "food waste" we usually focus on poor post-harvesting technologies, market anomalies, food choices, etc. But what if we extended our view at the molecular level of our food consumption, for example, how do our food choices affect our organism\'s ability to digest and thus convert energy for moving our muscles and brains? Looking at the modern, industrialized food systems, the biggest food wastage happens inside our bodies.
\n\nPrototyping in the physical/cultural/digital/logistical aspects of the food supply chain, bringing transparency and education in the food supply chain\xa0-both locally and internationally- is, in my opinion, a very, very\xa0potent tool in improving wider social/political problems. Maybe because food occupies the largest share of the global economy, so any change has considerable impact. Or maybe because people just connect!
\n\nOnce this happens, when cities start looking at their supply chains in terms of an\xa0"urban metabolism" (ie.\xa0energy/food going in and out) then we can start designing supply chains that connect the urban with the rural in equal terms.
', u'post_id': 702, u'date': u'2016-07-04 09:09:52'}, {u'user_id': 32, u'title': u'Undisclosed content ', u'comment_id': 16131, u'content': u'Undisclosed content', u'post_id': 702, u'date': u'2016-07-02 15:49:07'}, {u'user_id': 3, u'title': u'Agora for market. storytelling for brand development', u'comment_id': 12163, u'content': u"I asked about the work with producers because it's not obvious from your website - which looks more like\xa0a pitch to clients.
\n\nVery interesting, this bridging. I think I understand it, thinking too at how Edgeryders the organisation interfaces with clients and community as a facilitator.\xa0You operate under a novel model that respects market principles, but at the same time innovates in rewiring dynamics between traditionally disconnected stakeholders. And if you guys know how to package the story of localized food and taste, well you surely must be already riding this new\xa0market.\xa0
", u'post_id': 702, u'date': u'2016-07-07 08:54:20'}, {u'user_id': 3338, u'title': u'Provide a service for an Agora', u'comment_id': 11817, u'content': u'After researching and working for several years with small scale, artisanal farmers and grassroots communities (ie. Slow Food &\xa0ARC2020) our team at We Deliver Taste decided to bring a transformative process into the market, because it is the markets that need to change. Our vision is to bring more transparency and education in food supply chains and the market, thus empowering all actors involved to become real game players. New technologies and\xa0open data systems are proving to be really strong allies, allowing for more personalised service, more market awareness and more efficiency, without having to sacrifice the taste quality and cultural story of food and its territory, in the name of "competitiveness".\xa0
\n\nThe producers we work with are the real actors at the bottom. If they provide us with the right tools to work (eg.\xa0good quality, nutritiouts ingredients), then we are able to pass them over to talented chefs, who become themselves storytellers of these foods and their territories. We believe that this is a trully bottom-up process, where we as supply chain managers become the facilitators of this process.
\n\nOur clients (from small family businesses to large companies)\xa0like this approach very much, because they understand that from one side there is more public awareness, on the other there is no much skill in the market to support this transition. Maybe it is true that we "provide a service for a\xa0market", but it is also true that we see the "market" as an "Agora" which is not merely a space for economic transaction, but rather a place for participation and dialogue. Connecting conscious consumers with the stories of responsible producers is proving to be very strong. It just happens to sell well, too, so we as researchers don\'t necessarily have to find a job for a large multi-national agrifood company, but rather try to provide incentives for us, our clients/friends and make the system work for everyone.
\n\nIn terms of criteria for selecting producers, thay are not really imposed by us, but rather suggested by the principles of agroecology, organic farming, social enterprising, family enterprise, with know benefits to the food market, "from seed to soil".
', u'post_id': 702, u'date': u'2016-07-04 09:09:02'}, {u'user_id': 3, u'title': u'"demonizing the market is wrong" :-)', u'comment_id': 9542, u'content': u'Lovely to meet you @Pavlos, and welcome to Edgeryders!
\n\nI look forward to reading more, as Natalia is now paiting us a picture of you doing consultancy in\xa0an ambitious way that incorporates incentive systems - targetting those with\xa0"access to power and money". That seems different\xa0from the other approaches we heard about, for example foodsharing by intentional communities and building grassroots movements - see @Paul_Free\'s story from Berlin entitled "Gifteconomy". The difference I see (again, look forward to learn more) is that you are looking at this as if you are providing a service for a market, instead of building it bottom up. Does it work for you so far? Can producers and others in the food chain\xa0participate at their own initiative or does it depend on someone\xa0selecting products for distribution or connection with businesses?
', u'post_id': 702, u'date': u'2016-07-02 13:03:08'}, {u'user_id': 4, u'title': u'Yes!', u'comment_id': 9933, u'content': u'I agree, @Ezio_Manzini. Specifically, I agree with your item 4. An analogy: Edgeryders is enabled by openness (in both the sense you mention). Openness is a big constraint on how the Edgeryders organisation is built and develops. For example, the need to stay open (and be perceived as such) drove our choice to be a not-for-profit: this choice signals that we are not trying to be extractive in our social contract between company\xa0and\xa0community. Similarly, I expect heavy conditioning of openness on the design of open care services.\xa0
', u'post_id': 5749, u'date': u'2016-07-04 13:04:18'}, {u'user_id': 3324, u'title': u'Sharing Research ', u'comment_id': 27885, u'content': u'@Lakomaa could you share with us your research " review of the literature of collective intelligence in care policies"?
\n\nIt could be very interesting for us to have your research as a general framework, to analyze better the main success/key factors.
\n\nIn fact, as you read before, we\'re thinking as City of Milan, with @Rossana,\xa0to create a challenge that could be also an overview about the role of a public actor as a facilitator of open care projects.
\n\nLet us Know!!
\n\nThanks
\n\nFranca
', u'post_id': 5721, u'date': u'2016-06-29 15:54:32'}, {u'user_id': 3, u'title': u'Documentation - 2nd Consortium Meeting', u'comment_id': 26995, u'content': u'@zoescope just saw your message. See in the Open Care big team folder\xa0-> a\xa0documentation\xa0folder\xa0with all notes and materials\xa0from Stockholm.
', u'post_id': 5721, u'date': u'2016-06-28 13:08:11'}, {u'user_id': 1442, u'title': u'There was a document for minutes', u'comment_id': 26136, u'content': u'@Noemi Could you share the link?
\n\nthanks!
\n\nZoe
', u'post_id': 5721, u'date': u'2016-06-23 12:29:18'}, {u'user_id': 4, u'title': u'How to formulate a challenge', u'comment_id': 25794, u'content': u'In our experience, addressing communities works best when you ask them to share stories: experiential data. Asking for opinions or points of view is a bad idea. You get low quality information: half-baked abstractions, ideology, prejudice... we all are most interesting when we share things we have experienced directly. Experience is\xa0rich in content and deeply embedded in context. Looking at similar experiences (for example: being hospitalized) from many different points of view drives the "collective" in collective intelligence: the different experiences will combine into a community-validated point of view (for example, it becomes easy to recognize a single experience as an outlier if everyone else had a different experience on something).\xa0
\n\nConsider the following question, taken by @Rossana_Torri above:\xa0
\n\nWhat could be the added value of adopting a \u201cmaker/fablab\u201d approach to \u201creframe\u201d care systems pushing this kind of tools/skills/places into \u201ccommunity-driven\u201d care systems?
\n\nThis is not the kind of question you can directly ask a community. People will immediately go into\xa0wishful thinking mode: "we should.." ("bisognerebbe...") and design irrealistic and broken systems that no one can implement. Individual citizens are not especially\xa0good at systems design. They are good at data processing.\xa0I have explained this at length in my book.\xa0You need to ask indirectly, in a way that encourages them to tap into their experience. The equivalent\xa0direct question should be something like:
\n\nTell us about how you, or people close to you, use a DIY approach to staying healthy or caring for each other.
\n\nThis immediately puts the person into a citizen expert mode. They have already attacked a problem. This will be highly specific ("a visually impaired electronic engineering student\xa0needed a way to design electrical circuits, so we did XYZ"). The system level knowledge will be extracted, later, by using ethnography to figure out what concepts, practices, culture etc.\xa0connect the different stories.\xa0
\n\nWe are ready to assist you writing challenges.\xa0
', u'post_id': 5721, u'date': u'2016-06-30 10:54:03'}, {u'user_id': 3, u'title': u'Completely agree with you, Rossana!', u'comment_id': 25058, u'content': u'Following this argument, the \u201cartefacts/services/devices\u201d that WeMake will prototype at the end of the co-design sessions are not the final result of the process. In my mind final results (to be evaluated) are related to the questions listed above.
\n\n@Rossana_Torri so the way I see it is that we can:
\n\n\xa01) trust to get answers to these questions when the ethno/ network analysis is done - based on the stories of care that already mention intersections with regulatory\xa0systems:
\n\nExamples "You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize." (Prinzessinnengarten, Berlin). Or\xa0\u200bworking on a donation basis was my nod to being a non-commercial entity, which (as far as I know) means the clinic is not subject to licensing - similarly to people who volunteer in hospices, addiction recovery centres etc.\xa0I am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (Acupuncture clinic in Mortdoor, UK)
\n\n2) Launch a Challenge specifically on your question:\xa0What role for public actors to reframe care systems?
\n\nHave a look at the 4 challenges so far\xa0and let\'s work on a new one? It can be a\xa0description of Welfare di tutti and challenges you have. That would inspire others to open up too. I had a conversation with someone in Milano a few days ago working in healthcare and they were skeptical of sharing issues online because of damaging reputation. Setting a good example would go a loong way and inspire people to be open and constructive!\xa0
\n\nOnce the brief intro story is online, we can join forces to reach out specifically to administrations. You could run an internal process in which you ask people to send theirs by email and we upload them in accounts created with their emails and a username they choose. This way you don\'t ask them to come online from the beginning and come across a scary or weird platform?\xa0
\n\nLet me know, I made the same offer to WeMake team a while ago but no brief... I also asked everyone in the team to share their personal stories of care and use them for engagement instead of linking to opencare.cc or generic pages..\xa0Basically if we want conversations around something we need to start them and set the example.\xa0
\n\nSorry for the rant
Personally, but also from the point of view of the institution which I represent in the Opencare consortium (City of Milano), I feel I have not yet found the right "levers" to push people on the platform.\xa0 I\'m also aware that for this reason we (City of Milan) risk to lose the opportunity to be effective in enriching the online conversation.
\n\nWe tried to do that, through reporting on offline activities, but maybe this is not the best way (too indirect and "scholastic").
\n\nThe fellowships could work well, but maybe we need also different tools, which are capable to affect the quantity and quality of the interactions.
\n\nAs we said this morning, one possibility could be to formulate more precise questions, focusing on different "axes"/actions of OpenCare project. This could maybe help us to \u201cattract\u201d people interested/competent in some specific area of our research/action and catalyse interactions and mutual learning. Does it make sense? Did you take any decision at the end of the workshop?
\n\nEach partner has its own perspective and one of the challenging aspects of the project is \u201cmultiplicity in unit\u201d, as Alberto wrote some days ago. For this I am trying to imagine how we could better position the perspective of each of us within the common frame of OpenCare.
\n\nIf I look at the "local activities" we have developed in Milan during the previous month I would start from these points:
\n\nWhat could be the added value of adopting a \u201cmaker/fablab\u201d approach to \u201creframe\u201d care systems pushing this kind of tools/skills/places into \u201ccommunity-driven\u201d care systems?
Which role can play the public actor?
Which are the favorable conditions (context, type of communities, types of problem/demand of care\u2026) in which this approach can be helpful and generative of innovation?
Other\u2026.
In my opinion, and adopting the perspective of Ezio Manzini (networks of care), the \u201cfablab concept/approach\u201d that we are following in the \u201cmilanese pilot\u201d (which intersects care; skills/education (learning by doing); sustainable development, and surely other things\u2026) could be one of the strategic assets within a broader ecosystem where more actors are included and play different roles (citizens as care recipients and care-givers, administrations, public health institutions and professionals, no profit organization and so on\u2026).
\n\nFollowing this argument, the \u201cartefacts/services/devices\u201d that WeMake will prototype at the end of the co-design sessions are not the final result of the process. In my mind final results (to be evaluated) are related to the questions listed above.
\n\n\u201cCommunities\u201d (and here I have in mind: something that is not \u201cfamilies\u201d, not individuals, but people linked by a common interest/purpose; so I would say "elective comunities") are the propulsive force and nodes of the ecosystem. People act together as they are moved by a common challenge (not \u201cneed\u201d if you don\u2019t like the term) which is not answered by traditional/closed systems.
\n\nPlatforms (not only digital, but maybe also physical) could help to organize and improve the ecosystem (I\u2019ll come back to this point using the example of \u201cWelfare di tutti\u201d in Milan).
\n\nThanks to Ezio and to all of you for the challenging discussion!
\n\n...and sorry for the amount of errors that you will find in this text.
\n\nI\'m going from one plane to another and I have no time for check
Rossana
', u'post_id': 5721, u'date': u'2016-06-22 16:58:16'}, {u'user_id': 4, u'title': u'Glitch...', u'comment_id': 19907, u'content': u'Also ping:
\n\n@Massimo
\n\n\n\n', u'post_id': 5721, u'date': u'2016-06-18 16:24:29'}, {u'user_id': 4, u'title': u'And my favourite OpenCare story is...', u'comment_id': 14041, u'content': u'I have decided to put here my "homework".\xa0
\n\nMy favourite OpenCare story is still the first one: Greece\'s shadow health care system. I see a strong similiarity with the cytostatic network story in Romania, though I know less of it.\xa0
\n\nNo point discussing why these are care stories, that\'s self-evident. It makes more sense to discuss why they are open.
\n\nWhen all is said and done,\xa0everything\xa0in these stories is constantly renegotiated: the means, the teams, the actions. Except one thing: the people being served. In the Helliniko story, this is the local folks who have lost access to public health care. In the cytostatic network, it\'s cancer patients and their families, who cannot get hold of certain pharmaceuticals. The service is built around their needs.\xa0
\n\nFinally: these two stories are exemplar also in the sense that they can use small contibutions, like Wikipedia (as argued here). You can help Helliniko even just putting word out on social media when the clinic needs a certain medicine, or the cytostatic network just by puntting a couple of boxes of medicines into your suitcase when flying to Romania. This does not make them more open, but it does make them better at taking advantage of being open.\xa0
', u'post_id': 5721, u'date': u'2016-06-16 13:25:28'}, {u'user_id': 3, u'title': u'Location and time', u'comment_id': 10468, u'content': u'I\'m in and looking forward to it. Added the location in the event text and NB: time is 9 - 11 30 CET.
\n\nOur site timezones don\'t work.. (for some reason on my screen\xa0I see 8 00 -10 30 CET).
\n\nSharing here for the meeting purposes some stories for people to read, just in case you don\'t know how to choose:
\n\nWow. Very, very interesting. Evasive, right @Lakomaa ?
As far as I know the reason why you wouldn\'t see explicit calls for drug transports is because legally you\'re not allowed to transport but your own. So this is a grey area -people needed to say it\'s their own if asked at the airport or borders, although technically they couldn\'t have been arrested on such grounds.. after all they weren\'t commercializing anything.\xa0Even if the s*** hit the fan,\xa0no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system\xa0and covered by the medical insurance!\xa0For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses.\xa0This is merely a more efficient and structured way of doing the same.\xa0
\n\nStill, the network was semi-legal, meaning it operated under no clear incidence of laws. It\'s\xa0why I remember reading about\xa0Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie\xa0his face never shows.\xa0
\n\nFrom looking at the website, it seems the network worked based on collecting forms filled in by patients/family with requests for medicine - it\'s not clear though how much of the\xa0matchmaking was aided by the technology and how much\xa0was done manually, through Vlad and his network. Anyhow, most people who were part of it didn\'t know each other IRL\xa0- like Vlad and Valeriu, who were key nodes in the network!
\n\n@Sabina_U, lovely to meet you virtually, and hopefully in person soon!
', u'post_id': 698, u'date': u'2016-06-28 10:31:00'}, {u'user_id': 3333, u'title': u'Hi Alberto, thank you for the comment', u'comment_id': 15312, u'content': u'Hi Alberto, thank you for your comment!
\n\nThe post on FB didn\'t mention anything, just the travel question. But I saw it was a share from Vlad Voiculescu, so I understood in a second, even if the article that I read in november 2012 did not state his\xa0real name. But it was really not hard to connect the dots.
\n\nSo in that evening we spoke for almost one hour on the phone , then we met and I\xa0took the medcines, that was the first encounter so to speak.
\xa0Basically, Vlad coordonated the whole thing, he bought the medicines at first, then he found a lot people willing to help with buying, from different cities in Europe and not only.
\n\nSometimes Valeriu would pick up people from the airport, sometimes just meet them in Bucharest and took the medicines to the ones in need.
\n\nI don\'t know how it was for other cities, but there the distances are smaller and I guess people sorted it out in a similar way.
\n\nVlad also made a website: medicamente-lipsa.ro. People could acces it and find the missing drugs and the means to transport them.
\n\n\xa0Not least, a movie was made after the investigation in Hotnews (the website where I read the story in 2012)
\n\n\n\n\nYou can see it here until september for free\xa0http://www.hbogo.ro/content/the-network-1053692950
\n\n\xa0
I hope this helps!
', u'post_id': 698, u'date': u'2016-06-28 13:14:30'}, {u'user_id': 4, u'title': u'Great story', u'comment_id': 8333, u'content': u'Wow, @Sabina_U , what a story. Thanks for sharing.\xa0
\n\nSo, it starts with you seeing an update on Facebook. Did your friend mention that they needed someone to take medicines into Bucharest? Or just "somone who travels from Vienna"?
\n\nThen what? How did you in the Network coordinate? It looks like Valeriu was the one in charge of the final distribution; but how could a person in need of help access the Network? Was there a kind of coordinator (maybe Vlad)?
\n\nSorry to ask so many questions, but this is just too interesting.
', u'post_id': 698, u'date': u'2016-06-27 12:07:41'}, {u'user_id': 3, u'title': u'You were right: clinical involvement most interesting', u'comment_id': 17579, u'content': u'Thanks for the links @Rune, I\'m super curious to read the story. As I was reading the translated story of Marco the thing I kept asking myself is : but how do doctors run pre-evaluations and\xa0clinical trials for a hacked neuroprosthesis? The best place to upload the story, as I was saying, is going to opencare.cc -> Share your Story.\xa0
\n\n\xa0As for the whole\xa0of opencare on this\xa0site, to understand how it is designed I recommend reading first our Guide for OpenCare online community.\xa0Just a quick issue on the naming:\xa0OpenCare is the official name of the EU funded project that we are committed to run as per the proposal. While Op3nCare is also pretty much the same as you will read in the guide,\xa0designating the community conversations, the name and materials with this "3"\xa0spelling have\xa0the advantage of allowing more freedom - for example some participants are not from the European Union per se and may be inhibited if they see "EU research project" all over the website, so having an alternative brand umbrella can help. If you wish, it\'s a hack to keep the space\xa0open.
\n\nFor more technical design issues, I\xa0was saying that your user story, bug reporting and suggestions are welcome in the\xa0Technical development group. Please bear with the developers as they have a long list of things to fix still\xa0
Hi Noemi, it was great talking to you using the online meeting room. It realy gave some insight to the possibilities for \'tele care\'.
\n\nAs I told you we are working on a\xa0solution for people living with spinal cord injury (http://mecfes.wikispaces.com/)\xa0 and I\'d like to contribute with a casestory (like\xa0issues on transferring the technology into practical/clinical use). \xa0
\n\nI found out that our \xa0project resonates with the OpenCare project by sharing a similar vision (http://mecfes.wikispaces.com/Mark) \xa0vs. the story of Franko/Hacker comunity-driven care in the EU proposal.
\n\nHowever there are some issues with the OpenCare (or is it Op3nCare?) site which I\'d like to discuss or understand better. \xa0Would it be the proper place to proceed in this discussion or is there a more appropriate/\xa0preferred way?
', u'post_id': 690, u'date': u'2016-06-27 16:25:43'}, {u'user_id': 3, u'title': u'It may be of interest to Rune', u'comment_id': 8369, u'content': u'Hi @Rune, this is the story the Milano team are working on, just in case you want to ask anything or keep in touch with developments.
', u'post_id': 690, u'date': u'2016-06-27 15:09:07'}, {u'user_id': 4, u'title': u'Safety issues?', u'comment_id': 16177, u'content': u'Kitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like\xa0electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their "guests" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.\xa0
\n\n@Alex_Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !
', u'post_id': 695, u'date': u'2016-06-06 14:02:23'}, {u'user_id': 3, u'title': u'Also: Mazi Mas in London', u'comment_id': 12481, u'content': u'Just stumbled upon this\xa0social enterprise creating community and business\xa0opportunities for migrant women chefs - especially through popup kitchens.
\n\nMazi Mas means "with us" in Greek. "In the kitchen we speak the same language" they say.. A beautiful presentation video is here:\xa0http://www.mazimas.co.uk/our-story/\xa0
', u'post_id': 695, u'date': u'2016-06-28 11:22:51'}, {u'user_id': 3249, u'title': u'Undisclosed content ', u'comment_id': 11750, u'content': u'Undisclosed content', u'post_id': 695, u'date': u'2016-06-06 10:00:17'}, {u'user_id': 3, u'title': u'Real inspiration #MaketheWorldaBetterPlate', u'comment_id': 9429, u'content': u'Thanks for sharing this with us @Luisa.\xa0
\n\nI was convinced of this approach ever since I heard Jeff, a community member in Athens telling us about Senait\'s Kitchen to actually provide employment for migrants - a little like a company shell. In\xa0a year they\'ve gone through several iterations, bringing new migrants in the group of cooks, have catered to hundreds and are on their way of building a cooperative. Check out\xa0Options Foodlab:\xa0http://options.limited/about-options/
', u'post_id': 695, u'date': u'2016-06-05 07:56:00'}, {u'user_id': 1003, u'title': u'opensourcing opencare', u'comment_id': 33019, u'content': u'During the cons meeting me and Alberto had a small chat about the "brand" opencare.\xa0
\n\nI mentioned the Serpica Naro experience ( @Zoe is one of the founders):\xa0
\n\nthey registered (conventionally) the trademark and then they released it with a licence.\xa0
\n\nIt\'s still a very unconventional choice (TM are different than copyrights so you can\'t use CC licence)
\n\nhere\'s the licence \xa0- in italian:\xa0
\n\n\n\n\n', u'post_id': 4951, u'date': u'2016-06-24 16:07:31'}, {u'user_id': 3209, u'title': u'The new interactive version of the Style Guide has been posted! ', u'comment_id': 32974, u'content': u'Hello! Please go to this link and give a look to the new version of the Style Guide \xa0
https://edgeryders.eu/en/opencare-research/major-release-of-the-style-guide-interactive-version
\n\nBest,\xa0
\n\nSilvia
', u'post_id': 4951, u'date': u'2016-05-20 11:04:35'}, {u'user_id': 3074, u'title': u'Great job!', u'comment_id': 32927, u'content': u'Congratulations to the WeMake team and especially the ladies Silvia and Chiara for doing such a great job!\xa0
', u'post_id': 4951, u'date': u'2016-05-07 12:23:59'}, {u'user_id': 2464, u'title': u"We're getting there", u'comment_id': 32859, u'content': u'Thanks to the WeMake team for coming up with such a synthetic and clear guide.
', u'post_id': 4951, u'date': u'2016-05-06 17:41:49'}, {u'user_id': 3074, u'title': u'... and if you have access to the opencare google repository', u'comment_id': 32801, u'content': u'... I have built up a folder named "opencare visuals" where you\xa0can find the opencare style guide, all members\' logos and the communication recommendations.
No problem at all, as @Noemi mentions, these things take time. I appreciate the work you guys are doing. I just thought this was the occasion to underline it (and I saw you indeed used one of the recent visuals). We\'ll clarify things this Monday.
\n\nI might be late at the meeting though. @LuceChiodelliUB and @Costantino (hopefully at least one of them will be there) can point at the material they hae \xa0gathered and tell you where to find all of this.
', u'post_id': 4951, u'date': u'2016-05-29 12:41:36'}, {u'user_id': 137, u'title': u'which visuals should I be using then? @melancon ', u'comment_id': 32798, u'content': u'which visuals should I be using then? @melancon - sorry if i create confusion, I wasn\'t aware\xa0
', u'post_id': 4951, u'date': u'2016-05-29 10:54:42'}, {u'user_id': 3, u'title': u'Yes, some time needed', u'comment_id': 32788, u'content': u'I hear you. Natalia probably picked it up from the Op3nCare communtiy site, which has the same header.\xa0
\n\nIf you or @LuceChiodelliUB can make it on Monday\'s\xa0regular call\xa0maybe we can see how to achieve the consistency we are going for.\xa0
', u'post_id': 4951, u'date': u'2016-05-29 09:03:36'}, {u'user_id': 2464, u'title': u'Using the right visuals and denomination', u'comment_id': 32785, u'content': u'\n\nI hope posting this here will be useful, I can\'t relocate the post concerning the email notification you guys send.
\n\nI saw that @Natalia_Skoczylas (I am not sure I point to the right Natalia, the email sender simply is natalia@edgeryders) used the header visual proposed by WeMake as part of our panel of visuals. I am a bit sad to still see the "3" form of the project name though. This will eventually bring confusion. I known\xa0these things have only been half-decided as things were being done, but now that we have this kind of chart, we should stick to it as muc as we can.
\n\nJust thought I should mention it.
', u'post_id': 4951, u'date': u'2016-05-28 12:16:30'}, {u'user_id': 3, u'title': u'Appreciated!', u'comment_id': 32776, u'content': u'Thanks team WeMake!
', u'post_id': 4951, u'date': u'2016-05-10 07:49:44'}, {u'user_id': 1003, u'title': u'Draft Graphic Style Guide_opencare', u'comment_id': 32756, u'content': u'Hi,\xa0
\n\nhere a preview of the\xa0Graphic Style Guide aka Graphic Survival Guide for\xa0opencare\xa0partners aka Consortium.
\n\n@ChiaraFrr and @Silvia_D\'Ambrosio made\xa0a\xa0pretty cool job\xa0\xa0
https://drive.google.com/open?id=0B2hvchbsK99qcFZ1MVcwQ2xqY2s
\n\nHi, I have just a question because\xa0I don\'t understand @Alberto message about not agreeing on\xa0having Opencare social media channels: why\xa0 Edgeryders team opened up\xa0Twitter account and Facebook page at the beginning? (I think @Nadia and @Noemi opened them)\xa0.\xa0
\n\nWe accepted the decision you took and\xa0already agreed of\xa0giving\xa0our contribution on Facebook page and we can do it also on Twitter and we are happy to upload our videos on Youtube.\xa0We are just proposing to open up Youtube as a repository of all the videos we create so we can point people to 1 channel and find all the videos, otherwise they are spread around.\xa0It doesn\'t prevent all the partners to post each video on their own private channels if they want.
\n\nbest
\n\nZoe
', u'post_id': 4951, u'date': u'2016-05-04 19:38:38'}, {u'user_id': 2464, u'title': u'Two things', u'comment_id': 32584, u'content': u'\n\nIt\'ll be interesting to share our thoughts about this.\xa0I\'m not sure we\'ll have time to do it during the "official" steering committee, let\'s find some time off the official agenda.
\n\nI find the "two things" perspective quite natural. The project (not the EU funded one, "the" project) can be thought of as a lifelong journey. The EU funded project is a vehicle you use at some point to speed up your travel from point A to point B, hoping it will fuel your "project" to help get where you want to go.
\n\n"Two things" probably sounds differentyl to you. I am curious to better understand your view on "things"
what exactly do you mean two things?\xa0
\n\n\n\n\n\nps:\xa0
\n\nI\'ll listen but as you know I strongly disagree
', u'post_id': 4951, u'date': u'2016-06-19 11:38:21'}, {u'user_id': 4, u'title': u'Multiplicity in unity', u'comment_id': 32564, u'content': u'I agree with most of what you are saying, Guy. It is very true that a EU project\xa0is two things, and this not only for us but for everyone, at least in theory. It is its own thing: a project with a pulse, practices, a management structure, rules etc. It is also a stepping stone to wherever its partners want to go. There are some organizations that treat EU funded research as a market, and see themselves as active in this market. They do projects just to do projects. From what I hear, the Commission is not happy about this at all, because the lack of ambition of these organizations translates into a lack of impact of EU taxpayer money poured into research.\xa0
\n\nOn the other hand, the EC is a rule-based organization. Therefore, we do need to tick all the boxes. This leads to running two projects at once: one is, as you say, institutional and funded, and it will end on December 31st 2017. The other one is\xa0entrepreneurial and not funded, and it will live on or not. The two share some activities.\xa0
\n\nThe activities most central to the entrepreneurial side of the project should, wherever possible, overdeliver.\xa0We committed to delivering 1,000 pieces of content (posts + comments) by the end of the year. We are already over 1,500 \u2013 no problem for the institutional project, the box is ticked. But for the entrepreneurial project, we would love to overshoot the goal: get to 3-4,000.\xa0
\n\nHow is this achieved? By mobilizing people. ER is committed to mobilizing its own community (broadly intended). We believe this is, for us, the best use of our limited communication resources. And it\'s working out, given that most of 113 people who have contributed content to OC so far come from that direction. But everyone else is more than welcome to go fish for people and content in other spaces. We appreciate they may require different communication styles \u2013 even different philosophies of engagement. @Costantino says "user experience works", and he is right. @Noemi says "people are interested in people and their stories, not in websites", and she, too, is right.\xa0I have no problem with any of that \u2013 it probably means that Costa can reach out to a crowd that will react to Ux, and No to one that will react to stories. So, it makes sense that Costa is free to build a landing page he likes, and No to share links pointing directly to individual challenge responses. We will have more people, more diversity, better collective intelligence. Whatever works.
\n\nThe style guide is impressive work. We are grateful for it,\xa0and we will use it. But we will only use it when the benefits of doing so exceed the costs.\xa0
', u'post_id': 4951, u'date': u'2016-06-19 11:07:18'}, {u'user_id': 2464, u'title': u'The right perspective', u'comment_id': 32531, u'content': u'The recommendations we have must be looked at from the right perspective. There is room to adjust things. Let\'s work together to find a consensual solution.
\n\n[The best for me would be to have a face-to-face meeting on all this. I personally believe digital media not to be so good at solving the discussion we are entering. Why not put that at the agenda in June and make it an item to be discussed by the steering committe meeting. If June is too far away, let\'s make it a closed, official, mandatory meeting\xa0with\xa0steering committee members.]
\n\nI encourage everyone to appreciate the efforts made to come up with these recommendations. That being said, Alberto is absolutely right: part of it is\xa0a political compromise. I personally would use the term "institutional".
\n\nIDENTITY. On the identity side, the recommendations are right: for now, the use of different spelling is confusing. I agree with Zoe with the fact that the "3" is geek habit and can hinder our will to engage with "ordinary" people. The use by others of similar names, in similar context, has to be taken into account. This must be clarified and I am confident we will find a viable solution.
\n\nNOT ONE, BUT TWO COHABITING PROJECTS. The situation also partly holds to the fact that there are two projects running in parallel and mixing together. The institutional, funded, partly academic\xa0one\xa0partners engaged into; and the one promised to live long after the EU initiative and run by EdgeRyders -- I admit it took me some time to realize this. And in fact, the EU initiative was triggered by EdgeRyders\' fantastic capability to have people and\xa0ideas come together and great project emerge.
\n\nLANDING PAGE.\xa0I am ready to comply with the experts and designers advice on the use/design of single/multiple\xa0landing page(s), etc. I guess one main issue is that the EU project and partners of this EU initiative are simply\xa0non visible on the actual websites (the pages hosted on the edgeryders porta). And this is a problem that must not be too easily discarded/ignored. I hear this sounds dramatically narcissic, but hey, academia lives on recognition and visibility\xa0-- that\'s what fuels the funds we will be able to get the next time we run a tender. That\'s what fuels the whole of academia, from the baseline researchers to the top institutionals in the organizational chart.\xa0I believe it might\xa0just be the same with non-academic partners that nevertheless mostly live on public funds.
\n\nA distinct landing page looked like a good compromise to satisfy all these (narcissic)\xa0expectations. This distinct landing page is not\xa0about moving or having people meet, it has other "intitutional" aims, that are not addressed by the actual setting.
\n\nSOCIAL MEDIA. What I hear from Alberto is that trafic anyway takes place on EdgeRyders accounts. That bringing trafic to these other "opencare" accounts is a lot of work -- I hear he asks whether we (and who?) are ready to put the efforts to keep these accounts alive. So the question is (asked to the steering committee?): do we want/need these "institutional" channels, and if so are we ready to invest the necessary resources?
\n\nA question is asked about the relevancy of having a G+ channel (devoted to videos, from what I understood). Again, to be accepted,\xa0the answer must take the dual nature of opencare into account.
\n\nOk, that comment is far too long already. I hope its content makes sense.
\n\nI\'m looking forward to read all your constructive propositions.
', u'post_id': 4951, u'date': u'2016-05-04 12:58:00'}, {u'user_id': 8, u'title': u'Makes sense.', u'comment_id': 32410, u'content': u'The world is full of sleek design etc but this does not move people. Even with mangy design what draws you in is cool people with whom you wish to engage. We have seen this play out many times over.\xa0A lot of it comes down to f2f interaction, \xa0effective\xa0copy in the hands at exactly the right time that directs you to a person with whom you can interact.\xa0It\'s the social filtering to direct attention and energy. Meeting people= results. The return on investment from\xa0weaking and discussing design details yields diminishing returns.\xa0
\n\n', u'post_id': 4951, u'date': u'2016-05-03 19:13:24'}, {u'user_id': 2915, u'title': u'Regarding "landing pages"', u'comment_id': 32372, u'content': u'>\xa0Why don\'t we do a\xa0real\xa0alternative landing page (linking to the relevant pages: how to participate, challenges etc.) - See more at: https://edgeryders.eu/en/comment/22790#comment-22790
\n\nGets right to the heart of the matter because a "landing page" has to be less like the frontispiece of a publication and more like a well-designed rail or air terminal where you, who are in a hurry and who has never been there before, can efficiently get to your destination as quickly as you wish. \xa0Of course there are compromises because we don\'t want to put everything right there to the point that it is nothing but lists devoid of aethetics. \xa0
\n\nIn all my 30\xa0years in online networking, even with all the massive developments in visual and audio media, speed is still the most important thing. \xa0More people use Facebook or Twitter to come to our site(s)? \xa0Then it is even more true that whatever drove them here must fulfill for them their intention on their first visit. \xa0One extra click could be, and often is, the thing that is just one task too many for someone on the move.
\n\nSo make it look good and label it so that one cannot mistake where one is, and make it useful right there.
', u'post_id': 4951, u'date': u'2016-05-03 16:10:39'}, {u'user_id': 4, u'title': u'About social media accounts', u'comment_id': 32190, u'content': u'... this is more or less the same strategy that all EU projects have adopted since the Internet became a thing. The result has been a big digital junkyard of nearly-unused accounts on social media, hosting contracts that expire as soon as the funding does etc. Luce may have\xa0a point that it\xa0"looks good" when the project is live to the reviewers (depends on the reviewer I guess).\xa0Just staying in the fantastic world of CAPS (FP7, so projects that have at least 2 years of mileage already), check out the YouTube account of WebCOSI\xa0or the Twitter account of IA4SI (active project). There is even a CAPS\xa0project called SciCafe 2.0 that returns broken links.\xa0
\n\nThis does not happen because the people behind those projects are stupid, but because running social media accounts, blogs, websites etc. is hard work. Doing it well on a project that will only live two years is wasteful.\xa0
\n\nOn the other hand, if we did score a resounding success, we would start a spinoff producing care services.\xa0
\n\nBut then again we would probably run into copyright/trademark issue if that spinoff were called OpenCare.\xa0
\n\nSo.
\n\nDigital squatting is cheap \u2013 good idea to squat everything opencare.\xa0
\n\nOn the other hand, our dedicated social media channels are hard to grow into useful tools. For now, we get much more mileage pushing OpenCare content on the Edgeryders Twitter account than on the OpenCare one. For now, we use the OpenCare one to put out a sort of "corporate" feed about the project, with most of the interaction done through Edgeryders or our personal\xa0Twitter accounts. Same thing for Facebook.\xa0I predict most of the social media traction will be exerted through the partners, rather than the project.
\n\n| \xa0 | OpenCare | Edgeryders | WeMake |
|---|---|---|---|
| 134 | 2,915 | 4,420 | |
| 144 | 3,579 | 1,581 |
When you move beyond FB and Twitter, I do not think it\'s worth putting any work at all in keeping OpenCare social media accounts. Our web analytics show that other social networks bring in a negligible amount of traffic. Uploading stuff onto project accounts should be viewed as an admin activity, not a communication activity, and therefore should be kept to a minimum. Low overhead is the way to go.\xa0
', u'post_id': 4951, u'date': u'2016-05-03 15:18:52'}, {u'user_id': 4, u'title': u'Can we test this?', u'comment_id': 32075, u'content': u'I am not enthusiastic about having a landing page that links to another landing page. It seems more a political compromise than anything based on design principles.
\n\nWhy don\'t we do a\xa0real\xa0alternative landing page (linking to the relevant pages: how to participate, challenges etc.) and then test the\xa0performance of the two (or more)\xa0alternatives? I am not sure how that would work in practice. We normally do A/B testing\xa0with Google\'s Content Experiments, but that assumes you are staying within the same "web property". I think we could still do it like this:
\n\nWorks?
', u'post_id': 4951, u'date': u'2016-05-03 15:40:05'}, {u'user_id': 2464, u'title': u"Great - I can't wait to see more\n\n-- ", u'comment_id': 32040, u'content': u"Great - I can't wait to see more
\n\n--
", u'post_id': 4951, u'date': u'2016-05-03 13:37:08'}, {u'user_id': 1003, u'title': u'update', u'comment_id': 32013, u'content': u'We\'re working on a Design Survival Guide coherent with @LuceChiodelliUB remarks. (will be shared until the end of the week)\xa0
\n\nFollowing our hangout meeting of Thursday, April 28th [@melancon, @LuceChiodelliUB, @zoescope and @Costantino]\xa0and according to what was decided on that day, a discussion took place between a small group of partners to come up with a number of recommendations on our communication strategy.
\n\nSeveral aspects were taken into consideration:
\n\nOur recommendations include:
\n\nBlue and purple. We\u2019ll need to make this as precise as possible for future use (RGB, HSL encoding).\xa0
\n\nWe should stick to the use of Monserrat fonts.
\nTo start a Google+ page, we have to create a Gmail address first (opencare.h2020@gmail.com). This e-mail address shall not be shared / displayed nor used, - except for automatic replies, if the case presents itself.
This automatically creates an associated YouTube channel.
We may then follow the same @op3ncare / opencare login/name pairing as for twitter and Facebook.
Additional remarks:
\n\nHey guys, I told you I would come back soon,
\n\nI just landed in Montreal enjoying a chat with my daughter, I promised I would prepare something soon, like tomorrow?
\n\n
As I recall, op3ncare was adopted because there are several companies called OpenCare, and the brand is trademarked in some countries. Also, the Twitter account was taken.
\n\nI propose:
\n\nIn all cases, we are unwilling to redo the graphic work already done (video etc.).
", u'post_id': 4951, u'date': u'2016-05-01 20:01:34'}, {u'user_id': 3, u'title': u'Yes, except..', u'comment_id': 31792, u'content': u'Ok, so partners will have an answer and reference point when it comes to which name to use, typefaces etc or when in doubt.
\n\nAs for compliance, keep in mind that a lot of work has been done already in light of name considerations . For example with online accounts: opencare on twitter is taken, but in comms we do use #Opencare hashtag; on facebook the same - page is still OpenCare). So this should make it easy to be more consistent without undo-ing great work.
\n\nPS On Youtube OpenCare is also taken https://www.youtube.com/channel/UCM3UsvL6RMbT_NAn0tz2YIA.
', u'post_id': 4951, u'date': u'2016-04-30 18:08:00'}, {u'user_id': 2464, u'title': u'Coming soon', u'comment_id': 31780, u'content': u'As agreed during the last hangout meeting, we (UBx) had a meeting with WeMake (Zoe) to discuss around these issues and come up with recommendations. I plan to publish this here as soon as I have everything written down (travelling to Quebec, I am writing from the airport now).
\n\nIn two words: we need to stick to a single spelling and we recommend OpenCare (no 3, no blank space, proper capital O and C), visuals, video channel, and autonomous landing page. Survival guide for easier use and compliance with these recommendations.
\n\nMore to come.
', u'post_id': 4951, u'date': u'2016-04-30 09:12:42'}, {u'user_id': 3, u'title': u'Moment for someone to step up?', u'comment_id': 31753, u'content': u'@zoescope, I understood from the consortium meeting that the team in Bordeaux can make some recommendations and then the rest of us sign off to them, did I get it right? If not, maybe you guys in Milano can make a proposal if you have a vision for how visual design should be implemented? The proposal I\'m seeing here (Nadia can correct me) is for us to use these as a base and if people like them, use them, if not, change or adjust.
\n\nIf there is a counterproposal on the table chances are people are happy to change behaviors - e.g. create a guide to visual design similar to our guide to building online community?
', u'post_id': 4951, u'date': u'2016-04-29 19:29:37'}, {u'user_id': 1442, u'title': u'Consortium vs People', u'comment_id': 31688, u'content': u'I answer on the second part of your text because I want to check with @Luce tomorrow about some details\xa0the legal issues.
\n\nRegarding visuals: One thing is what we do as a Consortium and a totally another level is what people will do with the visuals as they are released in open source. You are mixing the two levels.
\n\nThe partners of the Consortium should be consistent in visual communication to be recognised as such.
\n\nAll the other participants\xa0should be provided with\xa0clear information of what is our visual style\xa0in order to decide if to follow it\xa0or\xa0not to follow it.\xa0
\n\nIf I know the rules I can decide how to break them and explain also why, if there are no rules it all becomes noise.
', u'post_id': 4951, u'date': u'2016-04-28 18:18:50'}, {u'user_id': 8, u'title': u'Op3nCare', u'comment_id': 31342, u'content': u'there are many companies etc that are called opencare\xa0and different variations of that, it\'s already trademarkerd\xa0in some contexts/countries (Luce was kind enough to check it out a while back). We ran with op3ncare after and have done so for some time now because it is not taken by anyone else. Video is using op3ncare and twitter account has been @op3ncare from get go because @opencare was also taken.\xa0
\n\nRe visuals: The philosophy we have been employing is that people can adapt the visuals as they like, remix etc. Reasoning: it is not realistic to demand that people stick to any one thing. Post what works for you above and people will adopt what they like. Or not.
', u'post_id': 4951, u'date': u'2016-04-28 17:34:45'}, {u'user_id': 1442, u'title': u'How do we write OpenCare?', u'comment_id': 30867, u'content': u'It\'s not clear to me how the decision to use 3 instead of "e" came into being and what were the reasons.
\n\nIn the Consortium call there was not a clear idea about it.\xa0
\n\nIn any case: for searchable (google search)\xa0reasons and uniformity of communication we should stick with ONE way of writing OpenCare regarding spaces, capital letters, numbers and fonts.
\n\nit is not clear in the information I read above how we should do.
\n\nMy opinion is:
\n\nFor sure we should do our best to\xa0avoid inconsistencies:
\n\nthanks for feedback!
\n\n@Nadia @melancon @LuceChiodelliUB @Alberto @Costantino
\n\nZoe
', u'post_id': 4951, u'date': u'2016-04-28 17:09:26'}, {u'user_id': 1442, u'title': u'Regarding typeface/font ', u'comment_id': 30292, u'content': u'\n\nWHat is the correct typeface to use to write Opencare?
\n\nit is not clear in the information I read above.
\n\nIs it Montserrat OR\xa0Helvetica Bold?
\n\nYou mention and use both above. I think we should stick with one typeface.
\n\nbest
\n\nZoe
', u'post_id': 4951, u'date': u'2016-04-28 17:08:20'}, {u'user_id': 3074, u'title': u'Template for deliverables', u'comment_id': 29513, u'content': u'Hi,\xa0
\n\nI put to your disposal a template for further reports / deliverables we will have to submit to the EC here\xa0(Opencare Admin folder).
\n\nThis template is shaped from the 1st documentation we submitted today to the EC.
\n\nBut we can still all go on and\xa0contribute\xa0for better graphics/visual arrangements.
', u'post_id': 4951, u'date': u'2016-03-31 11:50:50'}, {u'user_id': 8, u'title': u'They are in the same place for me?', u'comment_id': 28710, u'content': u'In any case the Outreach and Engagement folder for OpenCare is available here.
\n\nThe modifiable files are available here.
\n\nThe headers I produced using a software as service online called canva.com which is great for producing all kinds of flyers, headers banners etc quickly, you can get the opencare headers\xa0here\xa0(if you get an account I can share modifiable versions with you).
', u'post_id': 4951, u'date': u'2016-03-29 19:35:54'}, {u'user_id': 3, u'title': u'Link to modifiable design files', u'comment_id': 28424, u'content': u'@Nadia can you re-share the link to the google drive with project visuals/ avatars/ event logos etc? thanks!
\n\nAlso, the Open Care Outreach google drive is gone missing?
', u'post_id': 4951, u'date': u'2016-03-29 18:44:58'}, {u'user_id': 8, u'title': u'We are going to do an OpenCompetition', u'comment_id': 27300, u'content': u'This is a good way to kick off online engagement so I am asking you guys to hold off on any official design. The plan is to launch it on February 1 (still a lot of other comms related work/planning to sort out before). Use what you like for the event but that will not be the official visuals.
', u'post_id': 4951, u'date': u'2016-01-16 11:13:31'}, {u'user_id': 1442, u'title': u'update visual identity of Opencare', u'comment_id': 26902, u'content': u"Hi Nadia,
\n\nWe're preparing a presentation in italian to introduce Opencare in communities in Milan together with Comune di Milano. It would be great to have an updated logo to add to keynote and communication as, we discussed, the one we have now it was taken from an open source repository and used by many other projects.
\n\nAre you working on it or would you like we do a couple of proposals so we can proceed with setting up shared a visual identity?
\n\nthanks!
\n\nZoe\xa0
", u'post_id': 4951, u'date': u'2016-01-15 09:41:36'}, {u'user_id': 8, u'title': u'Still missing logos with transparent backgrounds', u'comment_id': 23422, u'content': u'Hi Everyone!
\n\n@Luciascopelliti\xa0@Lakomaa\xa0@MassimoMercuri\xa0@melancon!
\n\nI know everyone is super busy but can I ask you to please post the correct logos for your organisations in the wiki above? It will make life a lot easier for all comms work if all relevant materials are gathered in one place.
\n\nLucia: the logo for City of Milano has a white background which does not work for all communication materials- we need two versions of the logo with a transparent background (1) suitable for dark backgrounds (2) Suitable for bright backgrounds
\n\nErik: Same as above, we have three versons but they have white and back backgrounds respectively in the logo itself- we need a png with transparent background so we can put logos on different coloured materials .
\n\nGuy: Same thing again
Instructions for how to do this:
\n\nmake sure you are logged in on Edgeryders
Press "Edit" above to make changes to this wiki
In the editor look for the "Image" icon and upload the file on the serves, then right click and press the file\'s URL in the Image Properties window. This will insert your file.
To modify file dimension or text formatting click "Switch to plain text editor" below the editor and insert the parameters you want in the code.
Click Save.
Thank you!
', u'post_id': 4951, u'date': u'2016-01-12 11:11:14'}, {u'user_id': 4, u'title': u'Flickr?', u'comment_id': 22024, u'content': u"Tell them to use the Flickr search function for Creative Commons material. That's what we did:
\n\nhtttps://edgeryders.eu/opencare/welcome-to-opencare
", u'post_id': 4951, u'date': u'2015-11-24 08:54:34'}, {u'user_id': 2464, u'title': u'Any pictures promoting OpenCare?', u'comment_id': 20529, u'content': u'Anyone has pictures, something we could include in a short text promoting OpenCare?
\n\nI wrote a short abstract my institution wants to put up their website and they are asking for an accompanying picture.
\n\nAny help is welcome ...
', u'post_id': 4951, u'date': u'2015-11-24 08:52:00'}, {u'user_id': 3, u'title': u'Added some', u'comment_id': 15595, u'content': u'@Cristina_Martellosio\xa0thanks for sending over WeMake logos, added them. Fyi for the future if you want to add them yourself you need to:
\n\nmake sure you are logged in on Edgeryders
Press "Edit" above to make changes to this wiki
In the editor look for the "Image" icon and upload the file on the serves, then right click and press the file\'s URL in the Image Properties window. This will insert your file.
To modify file dimension or text formatting click "Switch to plain text editor" below the editor and insert the parameters you want in the code.
Click Save.
At least that\'s how I do it.
', u'post_id': 4951, u'date': u'2015-11-06 13:59:42'}, {u'user_id': 8, u'title': u'Do you have the white text against black background versions?', u'comment_id': 8505, u'content': u'Ping @MassimoMercuri, @Luciascopelliti, @Costantino, @melancon?
\n\nAm trying to put all this stuff in one place to make it nice and easy for us all
This reminds me of a project The Invisible Labs/Chronically Driven http://theinvisiblelabs.com/news/ and https://medium.com/chronically-driven. A different take on various health issues, and how they make people\'s lives... better.\xa0
', u'post_id': 693, u'date': u'2016-06-23 15:15:11'}, {u'user_id': 4, u'title': u'Labels and grids, again (and Darwin)', u'comment_id': 13987, u'content': u'It looks like Raul is\xa0advocating the removal of special categories ("labels") tagging underprivileged people. This means giving up our standard way of seeing the world by categories \xa0that have administrative and\xa0legal relevance\xa0("grids" in the language of James Scott). \xa0It seems to be a letimotiv in OpenCare.\xa0
\n\nI do see the potential for lock-in when administrative grids become involved. You get organisations that "own a problem": my\xa0organisation deals\xa0with blind people, yours\xa0with teenage pregnancies etc. As long as these categories have currency in the policy document and in the strategies of donors, the organisations serving them will prosper. \xa0
\n\nWhat I don\'t see is why label removal should be so hard intellectually. We have something we can replace categories with: frequency distributions. Instead of saying "we need to accommodate the disabled" we can say "3% of humans cannot go up more than one step, and the step needs to be lower than 200 millimeters". They can be disabled, but also simply old, or exhausted, or drunk. This is irrelevant. What\'s relevant is that it\'s just plain stupid to design a building that will not work every time!\xa0
\n\nThis is the classic Darwinian move.\xa0Linnean biology tried to characterize a species by characterics: birds have beaks, pelicans have very large beaks, humans walk on two legs... wait, that would mean Raul is not human, since he does not walk. But neither is he a fish, though he presumably can swim. So what do we do? Do we make him his own species?
\n\n\xa0Darwin said "look, a species is simply a frequency distribution across certain characteristics. For example, most ants do not have wings, but some (males) do. About 98% (I\'m making the number up here) of humans walk on two legs, but a 2% does not." The frequency distribution captures all the information a designer needs. What\'s so hard about using it?
', u'post_id': 693, u'date': u'2016-06-16 10:15:55'}, {u'user_id': 3, u'title': u"Most down to earth take on disability that I've read.", u'comment_id': 10408, u'content': u'@Moriel what an insightful interview!
\n\nFyi I was surfing the net and saw that Berlin received the Access City award from the EC in 2013 for removing barriers to disability, especially\xa0in\xa0urban planning and transportation. Surely public policies don\'t solve it, as Raul is saying, yet\xa0there is something about designing for the public space. It\'s interesting because it\'s so diverse\xa0- it\'s more neutral, and hosts\xa0encounters of all sorts of people. Just a thought.
', u'post_id': 693, u'date': u'2016-06-14 13:59:13'}, {u'user_id': 3, u'title': u'Yes for customized playgrounds!', u'comment_id': 10937, u'content': u'Great project, thank you for sharing. It\'s beyond me to see how the city can ever give up on ideas which work or generate enthusiasm.
\n\nYou\'d think the smaller the city, the easier to make this kind of change and keep it going. I see how consistent\xa0my hometown is becoming when it comes to\xa0legitimizing its caretakers and picking up on good ideas (gave the example of the hammocks in the park which became legit).
\n\n@ChristineOehme I don\'t know if you\'ve teamed up with @Moriel who is also doing work on disability, but she has been asking
\n\n"Is it the disability itself, that disables people? Or is it the attitude and perception of the society and a non-barrier-free environment which actually disables?"
\n\nFrom your post this question is less important because at the end of the day, the problem is how to\xa0enable\xa0Fabian and others\xa0to enjoy play like any kid should. So while disability is indeed a gradient (we are all disabled at something or at some point!) and needs a change in perception, it is actions (building inclusive\xa0playgrounds) that\xa0really hit the nail on the head. At least this is how I see it.
', u'post_id': 697, u'date': u'2016-06-21 07:01:38'}, {u'user_id': 4, u'title': u'Makers, again', u'comment_id': 7079, u'content': u'Wow, @ChristineOehme, this is really valuable material. Great work.\xa0
\n\nThe end of your post suggests Fabian (and others \u2013 many others, in fact) could benefit from customized playgrounds. This is not so difficult, as there are corners of the makers community that are both interested in it and able to do it. Controprogetto in Milano, for example, have at least once involved locals in a city called Taranto to design and build a whole (temporary) playground in the city center. The video is super-inspiring!\xa0
\n\n\n\nThe final 40 seconds or so of the video are an act of accusation to the municipality, which did not follow up on the work done and let the participatory work rot away. I guess this is another case for\xa0stewardship, a favourite topic in Edgeryders.\xa0
', u'post_id': 697, u'date': u'2016-06-18 09:35:03'}, {u'user_id': 4, u'title': u'Risks of overdetermination', u'comment_id': 33759, u'content': u'I follow your work from a distance with great interest.\xa0
\n\nI think you will soon run into an issue of determination. What I mean by this is: the simplest the "device", the more the ways in which it can be used, the broader the range of abilities it accommodates. Take, for example, plasticine:
\n\n
You can do all sorts of stuff with it, from just playfully messing around to veritable art. So, in a way it is perfectly inclusive. But if\xa0you ever tried to play with plasticine with someone else, you know that disabilities are by no means the only important differentiator: children of different ages, for example, will want to do different things with plasticine. Everyone likes it (it is accessible for everyone), but it does not necessarily bring people together. It appears that accessibility does not lead per se to socialization.
\n\nYour response might be to design in such a way as to restrict the ways to interact with the artefact. For example, there are not many things you can do with\xa0a merry-go-round (though children do try!). But then, you risk overdetermining the interaction, making your work uninteresting for everyone!\xa0
\n\nHmm, interesting problem! Looking forward to your next moves.
', u'post_id': 33741, u'date': u'2016-06-19 19:41:03'}, {u'user_id': 3279, u'title': u'Care By Communities: Is It Possible?', u'comment_id': 10364, u'content': u'European healthcare is facing significant challenges. \xa0With an aging population, expensive health care services and with the decline of the classic extended family, it\u2019s of the utmost importance to research alternative solutions that will help face these challenges. Healthcare in Europe has been a forerunner in developing new drugs and medical care to create the healthiest and longest-living society. But it comes at a huge cost. Countries throughout the European Union are looking at new ways of reforming the way healthcare is provided. Is community driven healthcare an option?
\n\nDiscover \u201cOpenCare\u201d
\n\nOpenCare, the first online community driven project that addresses the social aspects of healthcare. This project is structured to re-design care services in a more sustainable way, taking advantage of the scattered collective knowledge of individuals and communities, then sharing it to improve the well-being of others. This open-to-all knowledge approach to care is the heartbeat of OpenCare with the intention to explore the conditions for communities to design and deliver their own healthcare services.
\n\nPositive Disruption
\n\nIt\u2019s time for positive disruption in health care, and in care services in general. Why? With the health costs on the rise, the system is under strain, and often, it reacts by denying care to those who need it most. This is morally unacceptable.\xa0 When the Metropolitan Community Clinic at Helliniko as well as many others, in the world of care has proven how much farther communities can go in taking care of their members when they are enabled to do it. This is a unique health care approach. It is regulated off the grid, run by volunteers, does not accept money and operates with no management. Time to challenge, engage and create alternative solutions.
\n\nExpected Outcomes
\n\nThe OpenCare initiative is expected to help understand how to use the collective intelligence of communities concerning sustainable development and to explore community-driven healthcare. Edgeryders has partnered up with five world-class organisations in research University of Bordeaux, Stockholm School of Economics, ScimPulse Foundation, and City of Milan and WeMake to find, learn from, and enhance the experiences like the clinic in Hellinko all around the world.
\n\nTheir goal is a model of community-driven care services, based on modern science, open technology, low overhead and human touch that communities can provide, while large bureaucracies cannot. The OpenCare project, is in support from the European Union through its Collective Awareness Platforms (Horizon 2020).
\n\nWe are all touched by healthcare.
\n\nCheck out this video that explains OpenCare >>> https://vimeo.com/162811723
\n\n\xa0Photo credit:\xa0
\n\n
|
Daer @Noemi thank you for your comment, yes it is reallly big problem about visually impaird people here in Armenia, and in general Caucasus reginon, about unemployement statistic\u0589 we have official number\u057d but in Armenian languge...
\n\nhere is\xa0some source about visually impaied pp
\n\nhttps://www.armenianow.com/society/health/50049/armenia_health_blind_eye_specialist
', u'post_id': 33740, u'date': u'2016-06-09 12:21:29'}, {u'user_id': 3, u'title': u'Physical wellbeing and relevance to techies', u'comment_id': 33765, u'content': u'@MariamDilbandyan, nice to read you and welcome again (I had messaged you last week). Thanks for this, it seems you\'re on a great track.\xa0Your intuition of the client market seems about right, as physical wellbeing is increasingly important to techies and hackers.
\n\nI looked up the employemnt stats because I wondered if\xa0you meant 25 per cent of all the impaired, instead of 25 in absolute. Couldn\'t find it, and\xa0found different numbers (total 25K impaired people), but this only testifies to the scale of the problem. I also came across another initiative called Culture House of the Blinds, which you probably know of already.
\n\nPaging here @Moriel and their\xa0group in Berlin looking for inspiring approaches to design for generalized\xa0disability,\xa0not even using the word "disabled"\xa0in order to eliminate the stigma.
', u'post_id': 33740, u'date': u'2016-05-30 12:41:17'}, {u'user_id': 3, u'title': u'Will need to partner up with someone for a target audience', u'comment_id': 12574, u'content': u"I think a well defined audience makes for a good test case - because there is research involved, we need to think of who would be interested to figure these things out:
\n\n1) Learn from existing stories synthesised\xa0from the platform
\n\n2) Share their own to continue the process
\n\nCan we talk about this during Monday's call maybe?
", u'post_id': 5664, u'date': u'2016-06-05 08:11:41'}, {u'user_id': 8, u'title': u'Ok cool', u'comment_id': 11676, u'content': u'Do you want to make the first stab at an invitation/call? then the rest of us can come in and edit. It works well too with the process we had in mind for the cern workshop (Im writing the call this weekend)
', u'post_id': 5664, u'date': u'2016-06-04 09:41:42'}, {u'user_id': 3, u'title': u'I find Feed Forward inspiring', u'comment_id': 6696, u'content': u'Thanks for pointing us to this @Nadia @markomanka @Massimo .\xa0I didn\'t get what their methodology is for how many and which citizens\xa0to approach?
\n\nLast year in Bucharest @Alex_Stef was a fan of video-recording conversations like this one\xa0as an easy way to capture knowledge - maybe shorter ones. Then putting a recording into text should not be difficult.\xa0
\n\nOther than that, it seems that this is not a one timer thing, that conversations would\xa0need something like OpenCare Labs as platform\xa0events, where people can jump in because they are fairly regular.They could bring stories forward for collective analysis, the part I liked the most in FeedForward. The good thing about it is that we already have great stories here online to print and\xa0get started locally.\xa0
\n\nI think I would be up for trying this, with a very "research like format"\xa0+ good perks\xa0for participants
sorry for my late response and thanks for yours! Our group met today and we discussed our new challenges. Last week we applied for a contest wich is about encunters between refugee migrants and locals arround karl-marx-stra\xdfe in berlin. we are still waiting for feedback. what we want to focus on as a target group are alone travelling men because we learned, that they don\xb4t get enouth attencion or the offers are just not fitting good enough. They tend to have a loss of orientation after their jurney during their long waiting-times. Tomorrow we are going to make interviews with lot of people and hopfully get new input for design tasks. Stay tuned
Milan
', u'post_id': 500, u'date': u'2016-05-09 16:19:50'}, {u'user_id': 3, u'title': u'What did you propose as project?', u'comment_id': 19752, u'content': u'Google translate is not very coherent, sorry!
\n\nIf you\'re thinking of a project for people to get involved in while they wait before and after\xa0Amnesty International efforts, you might want to consider\xa0waiting times in order to filter participants in and out. @Yara_Al_Adib was kind enough to share this timeline for refugee\xa0"integration" in Belgium. From what I remember the longest times where after they are identified or have basic papers and before they are found housing- so during the rounds of\xa0interviews:\xa0\xa0https://edgeryders.eu/sites/edgeryders.eu/files/Arriving%20to%20BE.pdf
', u'post_id': 500, u'date': u'2016-05-04 21:38:30'}, {u'user_id': 2569, u'title': u'Exercise is good for the mind', u'comment_id': 19224, u'content': u'A few links to websites (mostly from reputable/establishment sources in the UK/US) that offer links between physical excercise and improvements to mental health and wellbeing:
\n\n\n\n\nhttp://www.rcpsych.ac.uk/healthadvice/treatmentswellbeing/physicalactivity.aspx
\n\nhttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC1470658/
\n\n\n', u'post_id': 500, u'date': u'2016-06-04 08:49:33'}, {u'user_id': 2569, u'title': u'Working on it', u'comment_id': 19215, u'content': u"I've asked for them to get me some links to documents that show the link between excercise and positive mental heath.
\n\nThey're going to get me some internet links so i can share the here
", u'post_id': 500, u'date': u'2016-05-11 15:03:54'}, {u'user_id': 4, u'title': u'Can we learn more?', u'comment_id': 19191, u'content': u'This sounds really cool, Alex. A free gym... next up, skateboard, team sports and whatever.\xa0
\n\nCan we know more about mental and social health effects?\xa0
', u'post_id': 500, u'date': u'2016-05-10 18:12:09'}, {u'user_id': 2569, u'title': u'Fitness', u'comment_id': 19136, u'content': u'I have been talking to someone at Calais who has set up a free community gym at the Calais camp.
\n\nIt works really well for mental health, engaging young men and encouraging interaction and participation.
\n\nPerhaps something like this would be worth exploring?
', u'post_id': 500, u'date': u'2016-05-10 12:09:48'}, {u'user_id': 2569, u'title': u'Similar problems', u'comment_id': 18225, u'content': u"I have found the same problems in Calais. Support programs\xa0aim\xa0at engaging and helping children and women, but\xa0young men, who make up around 90% of the camp, are more difficult to engage.
\n\nIt's true that we see\xa0mental health issues on the camp, including depression. These people\xa0are currently not\xa0supported through any projects that i am aware of. We are also starting to see a growth in\xa0drug dependency amongst long-term residents on the camp,\xa0which\xa0is worrying.
\n\nWe also struggle with the fact that many of the men on camp do not see the camp, or France, as their final destination. So\xa0it is difficult to get them to engage in longer-term initiatives in Calais. We have some success with language classes in\xa0English and French.\xa0Also,\xa0construction projects are popular activities.
\n\nLanguage exchange seems to be the best way to start engagement, after that i think it is food. Perhaps a community kitchen where they cook for you instead of always receiving support. My days at the camp are always full of offers to eat and drink food prepared by\xa0the residents.
\n\nMy suggestion is first\xa0to ask them how you can help, rather than guessing. We talk to community leaders on the camp every 2 weeks and ask for suggestions so we can improve our processes. They tell us how we can help them as much as we make our own decisions.
", u'post_id': 500, u'date': u'2016-05-09 19:35:34'}, {u'user_id': 3244, u'title': u'Thanks Alex', u'comment_id': 17150, u'content': u'I\xb4m very glad to see you responding to our first insight. I\xb4m sorry to anwer this late, still getting used to edgeryders. Indeed your knowledge arround these other Migrant Camps could be very helpful. In our research we learned, that there are a lot of programs an projects for families but few for alone travelling men. Also these mostly syrian men tend to fall in a hole after travelling and having a stressful time. Do you know these problems? What do you think how we can empower them or get them focused on new goals? Are there specific challenges the migrants in Calais or Dunkirk are facing?
\n\nMilan
', u'post_id': 500, u'date': u'2016-05-09 15:50:53'}, {u'user_id': 2569, u'title': u'Very interesting', u'comment_id': 14056, u'content': u"Hi Milan,
\n\nThis sounds like a great start for the project. I'm interested to hear more.
\n\nIf you want to know more about how these types of system work at the Migrant Camps in Calais or Dunkirk let me know.
\n\nIf you manage to take your idea further then i'd be interested to hear more and see if there is anything we can learn from your trial.
\n\nAlex
", u'post_id': 500, u'date': u'2016-05-03 18:43:24'}, {u'user_id': 3244, u'title': u'Team UDK Open Care', u'comment_id': 6576, u'content': u'Philipp Hainke (Produktdesign, BA)
\n\nMilan Siegers (Produktdesign, BA)
\n\nJan Stassen (GWK, MA)
\n\nTaina Sondermann (GWK, MA)
', u'post_id': 500, u'date': u'2016-05-03 13:58:25'}, {u'user_id': 3, u'title': u'A favourite of mine, this alarm signaling device', u'comment_id': 8823, u'content': u'I don\'t know which of the three solutions proposed by the community in the co-design workshops won and will be prototyped, but this seems like widely useful and needed.
\n\nLet\'s hope it won\'t be too advanced in what it can do \xa0and risk something like with the baby monitors - they were first simple\xa0audio devices with a clear functionality\xa0and now they\'re IoT machines or what not, prone to hacking and violating\xa0privacy.
Curious, will the people who have already participated in the initial phase be involved in the actual prototyping?\xa0
', u'post_id': 691, u'date': u'2016-06-02 06:29:30'}, {u'user_id': 3, u'title': u"If you're into how systems deliver health care..", u'comment_id': 23200, u'content': u'.. well @Pauline and @lujia, you might be interested in Eastern European care as well - I just published some of my own experiences here.
', u'post_id': 496, u'date': u'2016-05-26 11:43:15'}, {u'user_id': 3253, u'title': u'Hi Luija,\n\nsorry for not replying so long. Thank ', u'comment_id': 23137, u'content': u"Hi Luija,
\n\nsorry for not replying so long. Thank you for your perspective, it was very enlightening! We studied 20th century China quite rigorously in school, so I had some idea\xa0of the political, social and technological developments, yet as an expat I always felt\xa0very much isolated from the life reality\xa0of the\xa0locals.\xa0As I said, I never really had much contact with the 'real', 'authentic' Chinese medical system, because there were so many reservations about it. The issues that we encountered\xa0in those clinics that specialized on Westerners sound harmless compared to what you talked about! Do you know if there is anything being done now to improve the system?\xa0
", u'post_id': 496, u'date': u'2016-05-13 13:32:10'}, {u'user_id': 3265, u'title': u'Hi @Alberto,\n\nThank you for your interests and sorry ', u'comment_id': 22610, u'content': u'Hi @Alberto,
\n\nThank you for your interests and sorry for the late reply. Unfortunately, I am not too familiar with this area. All the information I have came from the news and stories I hear. I don\'t recall if I have heard punitive damage in China but I will take a look at it.\xa0
\n\nWith the little knowledge I have, and the experience of living in both China and the US for a long time, the impression--probably not accurate-- that I have on the health system in two countries is that in the States most problems are related to the high expense. Health insurance is expensive, calling an ambulance is expensive, there is always a long waiting in the hospital, and including what you mentioned--actions not being done to avoid suing. While in China, many problems are associated with lack of law enforcements and disrespect between people.\xa0
\n\nI will let you know if I find anything interesting.
', u'post_id': 496, u'date': u'2016-06-01 23:19:47'}, {u'user_id': 4, u'title': u'Fascinating!', u'comment_id': 21878, u'content': u'Wow, thanks @lujia, this is really good insight. I had no idea this stuff was going on in China.
\n\nI am particularly interested in the conflictual relationship between doctors and patients. This could be a very serious drag on the system. Liability laws, even when they are well-meaning, end up disincentivizing doctors to intervene, especially on cases that are serious and desperately need help. One of my uncles, a gynaecologist in New York, once told me that his liability insurance was far and away his highest cost, and that patients would sue for absolutely anything. In America, you can sue for astronomically high sums, because they have a legal insititution called punitive damage. If somebody causes you trouble, you can sue not only to recover the costs of the damage done, but also to "punish" the offender. Punishment depends on subjective evaluation of the offense, i.e. on\xa0how deeply you have been made unhappy by the offense: the more unhappy, the more money you can demand. Unsusrprisingly,\xa0\xa0most people say they are\xa0very\xa0unhappy, and demand a lot of money.
\n\nIn this situation, he explained,\xa0if you see a woman with a potentially troubled pregnancy, you\'d better stay the hell away from her. If you try to treat her and she or the baby have issues, she\'ll sue you into a smoking hole. But if you don\'t touch her, then you are good. Of course,\xa0she\xa0might suffer from lack of treatment, and that\'s too bad but not really your problem. But doctors, mostly, choose this career because they want to heal patients, so some (including my uncle) buy expensive insurance and carry on.\xa0Eventually the premiums rose so high that he just decided to go out of business. In Europe, this problem is less exacerbated, also because\xa0we do not have punitive damage.\xa0
\n\nWhat is the situation like in China? Can you tell us more about these "professionals"? Do you know of any community-based responses, like this one in Greece?\xa0
', u'post_id': 496, u'date': u'2016-04-24 10:25:47'}, {u'user_id': 3265, u'title': u"An Insider's View", u'comment_id': 20163, u'content': u'Hi Pauline,\xa0
\n\nFirst of all, I am very happy to know that one of my classmates has been to my country and lived there for so long! Secondly, please trust me when I say I totally understand how much trouble and frustration you and your family might have faced. I have studied in the USA for over six years now, and it was very difficult for me in the beginning. However, at least America is organized and has more serious regulations. On the other hand, China is this crazy place with things that I don\'t even know how they work XD.\xa0
\n\nThe healthcare system and medicine and food safety are two of the most serious issues that is occuring in China right now (along with hundreds of other ones...). If you think about it, China is a country that is both old and young. Modern medicine, science, social structure, and etc didn\'t become a thing until very recent in the history. The China now was established in 1949, and after that the country went through a four-year famine and a ten-year cultural revolution. By the beginning of 1980s, the entire country was behind\xa0on technology, education\xa0and many other things. Medicine --\xa0a\xa0crucial area \xa0-- unfortunately brought harm to many people due to the doctors\' lack of professional knowledge. Many people in my generation, including one of my best friends, suffer hearing loss because of\xa0antibiotics over-use. I have a permenant\xa0arm injury myself because of the improper obstetrics practice.\xa0
\n\nToday, the relationship between the doctors and the patients are super intense in China. The patients\xa0and their families\xa0would blame everything on the doctors and the hospitals if they think they are not treated "correctly". There are even groups of so called "professionals" who are paid by the patients\' families to make a mess at the hospital: break things and even physically harm the doctors.\xa0
\n\nI am not quite sure exactly how this works, but it seems to me that Chinese doctors like giving the patients all kinds of pills. It is very common in China to see a doctor just for a common cold, and you would recieve medicine for that\xa0(I\xa0never took anything when I was sick in America). People say that the doctors recieve benefits from giving medicine, but don\'t mark my words on this. I can definetly do more research later.\xa0And then, there is the question of how safe\xa0the drugs and vaccine in some places are. But I\'m afraid that is out of my knowledge.\xa0
\n\nI\'m not sure if any of this information is helpful. But one thing for sure, it is not just because you and your family are foreigners that getting a treatment is confusing and frustrating, it is becasue the entire system is a mess, even for locals like me.\xa0
\n\nLujia
', u'post_id': 496, u'date': u'2016-04-24 02:50:16'}, {u'user_id': 8, u'title': u'Yes I think Alex, Yara and Mousab might know?', u'comment_id': 18415, u'content': u'ping @Alex_Levene , @Yara_Al_Adib , @Mousab_Alshikh \xa0...maybe you have some experience dealing with Belgian institutions around health stuff?
', u'post_id': 496, u'date': u'2016-05-13 13:27:17'}, {u'user_id': 3253, u'title': u'Hi Alberto,\n\nsorry for taking so long to reply. ', u'comment_id': 17648, u'content': u'Hi Alberto,
\n\nsorry for taking so long to reply. You make an important point! This issue works the other way around as well of course, there has to be a mutual understanding between care givers and care takers.
\n\nDo you know anyone who might know how the situation is in the context of refugees?\xa0I believe the project group of @Cindy, @MarieScheurer and @HoneyMK\xa0have been investigating some of the communicative\xa0issues between refugees and official institutions in Germany. Maybe hearing other peoples experiences might be\xa0helpful for you,\xa0Group Chat Mate?
', u'post_id': 496, u'date': u'2016-05-13 19:35:32'}, {u'user_id': 4, u'title': u'Patients must cooperate', u'comment_id': 16058, u'content': u'It comes down to this: patients need to actively cooperate with care givers for the system to work at all. As a Westerner in China, your patterns of cooperation did not match with those of the Chinese doctors and pharmacists. You could not collaborate effectively: a doctor would tell you "yes, try this" when they meant "I don\'t know" or "there\'s nothing that can be done". And you\xa0would not understand, and this would lead to misfiring and frustration.\xa0
\n\nI can only imagine how much worse this is for people on the move in a less secure position: economic migrants, refugees etc. They must find Western carers (doctors, nurses, social workers) very hard to read.
', u'post_id': 496, u'date': u'2016-04-16 16:56:05'}, {u'user_id': 3253, u'title': u'Hi Noemi,\xa0\n\nsorry for taking so long to get ', u'comment_id': 11517, u'content': u"Hi Noemi,\xa0
\n\nsorry for taking so long to get back to you. I have to admit that I can't exactly tell you what kind of language was being used in the Chinese medical system - mainly because the only\xa0contact I myself had with Chinese doctors was always in the context of institutions that somewhat\xa0catered\xa0specifically to Westerners. Being a child, I wasn't quite so aware of it, but from what I remember hearing in\xa0conversations between my parents and their expat friends, there was a sense of fear and mistrust in the Chinese system. The cultural communications issue was one worry, but there were also reservations about hygiene and safety standards. In general,\xa0the\xa0quality of medical care seemed to be\xa0perceived\xa0poorer\xa0than the Western methods. However, I am in no position to judge if these were\xa0actually justified assumptions or if it was more a matter of perception.
", u'post_id': 496, u'date': u'2016-05-13 13:11:41'}, {u'user_id': 3, u'title': u'Medical practices in China', u'comment_id': 8853, u'content': u'Hi @Pauline, a very interesting read, thanks for taking the time to upload your conversation. You\'re also pretty much the first edgeryders connection to China!
\n\nI\'m not sure I got it right (used Google translate): in your last paragraph you say that the medical system tends to behave same as the social, meaning that doctors treat patients using cultural language in addition to medical language - more scientifical language - and that makes it that sometimes\xa0treatments\xa0are\xa0less acurate? very interesting indeed.
', u'post_id': 496, u'date': u'2016-04-14 09:50:04'}, {u'user_id': 4, u'title': u'Check this out', u'comment_id': 15573, u'content': u'"Disabled people need barrier-free environments, acceptance, suitable language and connection."
\n\nHey,\xa0I\xa0need those things too. Everyone does. So:
\n\n"Disabled people need barrier-free environments, acceptance, suitable language and connection."
It comes down to making sure you do not build barriers by assuming some kind of norm. The norm\xa0is\xa0the barrier.
', u'post_id': 692, u'date': u'2016-06-01 20:56:10'}, {u'user_id': 3069, u'title': u'other projects', u'comment_id': 11430, u'content': u'There are also other stories in the same context of Milan codesign sessions https://edgeryders.eu/en/fatti-pi-in-l-or-step-aside, https://edgeryders.eu/en/in-p
', u'post_id': 692, u'date': u'2016-06-01 11:47:37'}, {u'user_id': 8, u'title': u'Check out the work that weMake is doing in Milano?', u'comment_id': 8652, u'content': u'Hi Luise ( plus Moriel, Christine and Lujia),
\n\nI saw from Susa that everyone has made great progress on their projects You may want to check out the work that @Moushira posted about \xa0\xa0here plus comments: https://edgeryders.eu/en/step-up
Really hard one: We have a flag over our head, marking our belonging to a certain group of people with common "values", the first one being same nation based on tradition/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don\'t have time/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our "benign\xa0attempts to civilise them"(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.
\n\nThe only way to truly build bridges between communities is to \xa0have them work together, eat together, talk and exchange knowledge about each other. (even then you\xa0might get an incredible reaction like "hey Mohamed is such a nice guy...FOR a Morrocan", so one stops regarding him as a foreigner but \xa0he stays an exception, he is UNLIKE those others\xa0:).
\n\nAll those divisions are totally unnatural if you ask me, in fact it is beneficial for human species to mix as much as possible, greater mixture of genes leads naturally to better results and greater mixture of cultures/difference of experiences is of immense value.
\n\nI dont really have a flag above my head, i am a human and i believe all humans have equal value but it took me years to realize that and bear in mind i question everything, even my own actions, thoughts, feelings. So maybe travelling inwards might solve issues as well? Asking important questions to ourselves or others like: Why do i keep distance from this person? What is the origin of my fear, mistrust, why am i judgemental? Again, how does one accept the idea that he/she is wrong in some fundamental ways? Ego is an obstacle :).
', u'post_id': 652, u'date': u'2016-04-24 12:02:18'}, {u'user_id': 137, u'title': u'I am not convinced about this particular choice ', u'comment_id': 24385, u'content': u'I am not convinced about this particular choice I have made - in fact, I am mostly deeply irritated during these debates.But it helps me escape the bubble I live in, inhabited by people that agree with each other. Though, I am still pretty far from understanding why they think what they think.\xa0
', u'post_id': 652, u'date': u'2016-04-18 10:18:18'}, {u'user_id': 3, u'title': u'On proving your close ones wrong', u'comment_id': 22652, u'content': u'@Natalia_Skoczylas your story reminded me of something and now I\'m wondering.
\n\n\xa0I decided not to break a friendship when I saw a (rather distant) friend of mine was a supporter of a right wing extremist social group on facebook. I guess, like Alberto explains above, I was giving up on any possibility to change their mind. The fact of the matter is, and I\'ve tested it before, that you can\'t beat emotional arguments with rationality. Honestly, that feels like a dead end.\xa0
\n\nBut maybe one still needs to at least make a case before deciding to tolerate attitudes around you that go deeply against your owns. Mea culpa.
', u'post_id': 652, u'date': u'2016-04-17 10:44:20'}, {u'user_id': 4, u'title': u'Whoa', u'comment_id': 21716, u'content': u"Well, your friend certainly got me wrongfooted. He thinks we should all keep separate to keep cultures pure, yet there he is, a catholic Slav in an Anglo-Celtic\xa0protestant country. He does not like the idea of blonde girls sleeping with black guys, but I am sure he, like most men of any shade, enjoys the sight of a pretty black woman. Very hard to argue on these basis.\xa0
\n\nWe can only hope that the people bringing back the good stories will be more credible and cooler than those bringing back the bad ones. This way, we can win over more of the new generation \u2013 aim at cultural hegemony, in other words.\xa0
\n\nPeople who believe in cultural purityafter the age of 18? I am afraid they are a lost cause. I do not recommend investing time in trying to change their mind. That's their loss: they are going to miss the music and the food and the laughter and the glorious diversity in Vuka!\xa0
", u'post_id': 652, u'date': u'2016-04-07 07:50:03'}, {u'user_id': 137, u'title': u'It gets even worse when I talk to ', u'comment_id': 19778, u'content': u"It gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?\xa0
\n\nIt is also a challenge to create this environment for meetings that would not feel like encountering something exotic and different due to some voyerist instincts - I used to work in italy for an NGO and we organised human libraries there, but even though it is some sort of step for people to have a chat with migrants from Ghana and Bangladesh, to meet transvestites and gay community members, it felt a little bit like a show. These people run into each other on the streets, you see them every day - why so many of us decide not to interact, discover and understand them? It's a puzzle.\xa0
", u'post_id': 652, u'date': u'2016-04-07 06:40:40'}, {u'user_id': 4, u'title': u'We can make one! ', u'comment_id': 18165, u'content': u'It was great fun. But, hey \u2013 we know so many global people now! We can just make more parties like it. In fact, I have half a mind to throwing one in our place this summer... I am sure you can find a DJ in Calais,\xa0@Alex_Levene .
\n\nI also still like the title: Vuka! (apparently it means "arise" in Zulu \u2013 or so our South African friend Dan maintained). It\'s a cool word.
', u'post_id': 652, u'date': u'2016-04-06 22:30:00'}, {u'user_id': 2569, u'title': u'I wish i could have come to that ', u'comment_id': 17006, u'content': u"I wish i could have come to that party! It's sounds like so much fun
", u'post_id': 652, u'date': u'2016-04-06 21:53:30'}, {u'user_id': 4, u'title': u'"How can they happen without being forced?"', u'comment_id': 14055, u'content': u'This, for me, is a really difficult design challenge.
\n\nYears ago, I was living in Milan.\xa0I got frustrated because, though people from every corner of the world lived in the city side by side with me, almost all of my friends were white Italians like myself. WTF?
\n\nWith a small group of global friends, we responded by throwing a party. The idea was:
\n\nI mentioned it in my blog:
\n\nAnd so, with a small group of Milanese from all over the world we decided to organize a party to celebrate the diversity of our country and our city. We called it Vuka, which means \u201cArise!\u201d or \u201cAwaken!\u201d in the Zulu language; and we are going to throw it tomorrow, Tuesday March 22nd at 10 p.m. sharp, at Casa del Pane di Corso di Porta Venezia 63 (map). We designed it as a club night for dancing to the sound of the most cutting-edge clubs of Lagos, Karachi and Barletta [a small town in the south of Italy]; and where the Milanese of any origin are welcome and respected. Join Medhin (Milano\u2013Asmara), Nadia (Stockholm), Dan (Johannesburg), Davide (Verona-Sydney-Osaka) and myself to dance away to the world\u2019s beat in a space where everyone\u2019s welcome, and our many differences of living out Milano power up the party.
\n\nIt worked pretty well! But then, we left the country and could not continue with the experience\xa0\xa0
I appreciate its message to companies, makes it clear and quite convincing.
\n\nActually "newcomers" is the most generic, broad enough and also non-offensive term we came up with for this OpenCare challenge. It turns out that most of us have fit that category at some time in our lives.\xa0I only wanted to point out that projects looking at integration of sorts might need to acknowledge that those who are perceived as newcomers\xa0can already have strong cultural claims to a space because they are already shaping it\xa0e.g. working\xa0migrants, or foreign\xa0students settling to a space.\xa0
\n\nAnd so even this generous term falls short. Will keep thinking about this.\xa0
', u'post_id': 652, u'date': u'2016-05-24 10:57:51'}, {u'user_id': 3249, u'title': u'Undisclosed content ', u'comment_id': 12739, u'content': u'Undisclosed content', u'post_id': 652, u'date': u'2016-05-24 09:25:04'}, {u'user_id': 3, u'title': u'No worries about late response, glad to see you back.', u'comment_id': 12157, u'content': u'@Luisa, just a quick thought: maybe Welcome Dinner is more popular with locals than newcomers because of the way the team is configured - mostly locals I\'m guessing? If "newcomers" (generic term because newcomers might have been around for some time now!)\xa0were actually part of the design and the project team they\'d have new insights into how more diverse communities can be engaged. This is exactly what we\'re looking at with OpenCare - novel ways of improving\xa0promising projects out there, even if these new ways are\xa0just insights or if it means borrowing ideas from different projects faring better already.\xa0
', u'post_id': 652, u'date': u'2016-05-23 09:07:35'}, {u'user_id': 3249, u'title': u'Undisclosed content ', u'comment_id': 12132, u'content': u'Undisclosed content', u'post_id': 652, u'date': u'2016-05-22 20:26:23'}, {u'user_id': 3, u'title': u'Questions for all indeed!', u'comment_id': 9719, u'content': u'Hi @Luisa, nice to meet you and welcome on board of Edgeryders. I\'m Noemi, and like you I was disappointed at the lack of empathy people around manifest when it comes to displaced populations.
\n\nEnd of February in Brussels many of us edgeryders had a community event to look at what is out there and how people like us can be part of a constructive\xa0mobilization. We had a powerful case study from Armenia where @Iriedawta shared mind bogging numbers and wasteful efforts in her country to deal with this, but we also met people like the group at Dine With Us in Brussels who are one step ahead of the game. That, for me, is an illustrative answer to your question "can we trigger it at home?"
\n\nFor me, the test is winning arguments with family and close friends whose opinions are a little far off from mine.\xa0What is your practical experience?\xa0
', u'post_id': 652, u'date': u'2016-04-05 07:39:18'}, {u'user_id': 4, u'title': u'Different online cultures...', u'comment_id': 23162, u'content': u'That\'s very informative, @jdossou80@yahoo.com, thanks.\xa0
\n\nIt seems that in the USA and Europe there is a "middle generation": people that got on the Internet when it was still relatively new, let\'s say before 2006. Those people managed to see the tail end of the noncommercial Internet; and they remember what it means for using a website to to be "hard": slow dialup connections, textual interfaces, floppy disks with vintage browsers like Mosaic and Netscape. These people make good online collaborators; they go for content and community, and if they need to work a little harder to get it they will. This means they will forgive you websites like Edgeryders, that do not have the usability firepower of Facebook.\xa0
\n\nYounger people here are harder to engage. They have never known anything but superfast Internet with integrated video, always available on their smartphones. They do not miss the free, noncommercial web of the early days, an\xa0\xa0have less patience for minor technical flaws.\xa0
\n\nFrom what you say, Africa skipped the early phase of the Internet. Almost everyone who is online now got online in the last 5 years. They have never known anything but Facebook. It is the only game in town.\xa0
\n\nHmmm.\xa0
', u'post_id': 672, u'date': u'2016-05-17 17:45:01'}, {u'user_id': 3, u'title': u'Running like a well oiled machine', u'comment_id': 21684, u'content': u'Thank you for the detail, it seems you have figured a lot out over the years. Also, as you can see Alberto and I are very much into communities, so for me the question is always around the "how", how people organise, how you get things catering to such a large group. And I know from experience that moving from the online to running offline activities is suprisingly hard - some people to the first great, some people to the second one great, but being able to pull off both seems like a big win.\xa0
\n\nAnd the balance for you seems to be in doing prevention in a fun\xa0way:\xa0"There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD." And in collaboration, which is our bet too for edgeryders.
\n\nWhat do others think?
', u'post_id': 672, u'date': u'2016-05-03 17:22:21'}, {u'user_id': 3273, u'title': u'Thanks Alberto and Noemi for your comments', u'comment_id': 21489, u'content': u'It is amazing to read you, as you raise sharply some key concerns that the group is facing.
\n\n1- How do we help? The facebook group is just one of the means/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases. \xa0 Beyond the key "theoretical" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.\xa0
\n\nThe online facebook group, is not a tool for curative or palliative care such as online consultations with drug prescriptions. Medical doctors are involved in the discussions and if required, they can give offline, specific orientations to go for curative consultations; but discussions in the group, do not involve curative or palliative care.
\n\n2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be\xa0a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation \xa0on some specific subject with high interest and\xa0later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you want.
\n\n3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan\xa0Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d\'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve\xa0all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.\xa0
\n\n4- Offline events. We realized early in our learning process in the group, that online presence alone is not going to help us reaching our goals. We organize collaboratively offline events: physical activities (walks), risk factors screening, interactive conferences and\xa0workshops. All those events are organized by members of the group. We use the online tools to recruit members who want to collaborate in the organization. We share with them some key principles and support. We use the online tools as well for advertisement of the events. The access to all the physical\xa0event is free of charge. We use a collaborative process to raise the funding, using members of the group that has skills and key positions in potential funding structures. By doing so, we were capable of raising up to 25000 dollars in 2015 to organize physical events. This is happening in a context where the ministry of health do not have any internal budget for this kind of event. The local representation of WHO makes about 2000 dollars only available for this kind of event. In the organization of those offline events, community members hold\xa0a lot of power in the process.
\n\nWe still have a lot to learn, about this experience. Thanks for your attention. I\'m very interested in learning from your reactions, analyses, and suggestions.
\n\n\n\nThank you for being here with me.
', u'post_id': 672, u'date': u'2016-05-01 17:13:43'}, {u'user_id': 3, u'title': u'Tell us about the walk', u'comment_id': 15220, u'content': u'Hi Jean-Paul, a warm warm welcome to Edgeryders, we didn\'t have a chance to meet in Brussels last Feb I think.
\n\nImpressive indeed, how many community organisers are needed to cater for\xa0a group of >21000?
\n\nWhat I like most about your initiative is that you organise offline gatherings like the walk, and I\'m curious how they work,\xa0if you learn new stories. For example, some people here in the community mentioned how for them\xa0health- or social\xa0care is about reciprocity:\xa0People help other people in need and receive help when the time comes when they need it. Do you know how the people in your group relate to care? Is it a service or more a commmunity that they are part of?
\n\nThanks again!
', u'post_id': 672, u'date': u'2016-04-26 05:18:07'}, {u'user_id': 4, u'title': u'Impressive!', u'comment_id': 8193, u'content': u'Welcome, @jdossou80@yahoo.com. And\xa0congratulations! Coeur d\'Or seems like an impressive achievement.\xa0
\n\nI wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and \xa0even spam (as I write this, someone calling themselves "Marcel Enyonam" is offering cheap loans on about ten posts).
\n\nMy main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what?\xa0I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it\'s just me \xa0
Keep it up and stay safe, Anna!
', u'post_id': 33738, u'date': u'2016-05-17 14:46:47'}, {u'user_id': 2201, u'title': u'Why has peacemaking in the Karabakh conflict failed? ', u'comment_id': 33808, u'content': u'Answering that question requires examining the roots of the conflict, the context in which it arose, and the factors that have kept it going. This study offers some frank evaluations of the efforts made over the years to resolve the conflict, some of which have not been discussed publicly except in the partisan narratives of one side or the other.
', u'post_id': 33738, u'date': u'2016-05-16 12:51:59'}, {u'user_id': 2201, u'title': u'Panama Papers', u'comment_id': 33796, u'content': u'In\xa0Azerbaijan\xa0and\xa0Armenia
', u'post_id': 33738, u'date': u'2016-04-06 08:45:10'}, {u'user_id': 2201, u'title': u'Thank you @Alex Levene!', u'comment_id': 33780, u'content': u'Thank you @Alex_Levene! Though it\'s temporary ceasefire, Azeris still shoot but not as much as before, now we need to wait and see...apparently there are 2 solutions out of this: full blown war or back to frozen conflict. The thing is Armenians are united against a common enemy and ready to protect their land while for Azeris this is a matter of principle - after all NKR has been a part of Azerbaijan during USSR, so they can\'t accept to lose it. Apparently no way to solve this conflict in a diplomatic way...maybe in a 100 years, when the rulers change and the new open-minded generation comes to power.
', u'post_id': 33738, u'date': u'2016-04-05 19:59:12'}, {u'user_id': 2569, u'title': u'Heartbreaking', u'comment_id': 33769, u'content': u"This is awful news given all the psoitive information you were sharing with us at LOTE5. I'm upset (but not surprised) that this issue is receiving absolutely no attention in UK.
\n\nI will do what i can to share stories
\n\nAlex
", u'post_id': 33738, u'date': u'2016-04-05 17:59:24'}, {u'user_id': 3253, u'title': u'Community Garden', u'comment_id': 26945, u'content': u"Hey Dennis,
\n\nthere is a community garden\xa0called Himmelbeet in Wedding that might be an interesting project for you to check out! Volunteers can just come\xa0in during the opening hours and just see what kind of work there is to do - usually always something, from gardening to building stuff to preparing workshops. They have alot of projets going on and would be more than happy to talk to you,\xa0I am sure.\xa0I believe that some refugees work there too, or would be very welcome at least!\xa0
\n\nActually, I just started\xa0volunteering there some weeks ago. For their Spring Opening Fest, I helped set up and supervise a little stall for people to make Stockbrot. At first, it was us preparing the bread for the guests and then they would cook it over the fire. However,\xa0some of the refugees that were there were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily\xa0and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough.\xa0Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped\xa0you a little!
", u'post_id': 665, u'date': u'2016-05-16 14:26:12'}, {u'user_id': 3245, u'title': u'Imposed Boredom & The Autonomy to Act', u'comment_id': 26014, u'content': u"Hi Everyone!
\n\nThank you all for your responses! I'm afraid, I haven't yet caught up with the whole routine, so sorry for my impoliteness of answering late..
\n\nWe (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out.
\n\nHow is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men.
\n\nRight now, we're in contact with a group of Syrians, around 25-32 of age, who have given us insights on daily life in the camp but also daily life in Syria and we have spoken about the small moments that create the feeling of home.
\n\nSince they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).
\n\nSeeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools?
\n\nBoredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better.
\n\nAt this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.
", u'post_id': 665, u'date': u'2016-05-10 17:37:58'}, {u'user_id': 4, u'title': u'Thinking in the right direction', u'comment_id': 24875, u'content': u'I am no expert, but I think you are on to something @lujia. This idea of everyone being simultaneously care giver and care receiver is the cornerstone of OpenCare.\xa0The commercial is cute too!\xa0
', u'post_id': 665, u'date': u'2016-04-24 10:33:52'}, {u'user_id': 3265, u'title': u"It's a two way street", u'comment_id': 23723, u'content': u'Hi Dennis,
\n\nMy comment has little to do with refugees, but this project I did last semester back in New York was about the relationship between the provider and the receiver as well.\xa0
\n\nThe area I focused on\xa0was disability. I interviewed a few people on the street who were in a wheelchair, and did a half day experiment rolling myself in a wheelchair. It was quite an experience I have to say. I suddenly\xa0found myself shorter than everyone else --\xa0both physically and psychologically. Many people offered me help, and of course I told them the truth, but I felt if I were really disabled, I wouldn\'t simply say yes because I wouldn\'t want to trouble others and\xa0would want to be as independent as possible. On the other hand, when I see a handicapped person, and a few of my classmates agreed on this, sometimes I am not sure if I should help him/her because I don\'t want to assume that they can\'t perform\xa0certain actions and offend them.\xa0
\n\nAs time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, "belittled" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn\'t spend much time on this project so my answer to my question might sound cheesy.\xa0\xa0I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that\xa0time to work out.\xa0
\n\nHere is the link to the commercial I made for the product. Hope this gives you some inspirations :). \xa0https://vimeo.com/142760828
\n\nLujia
', u'post_id': 665, u'date': u'2016-04-24 00:35:22'}, {u'user_id': 2569, u'title': u'Similar', u'comment_id': 20040, u'content': u"Hi Dennis,
\n\nWe see this same problem with many of the short term\xa0volunteers in Calais.
\n\nA lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to\xa0help\xa0of their agency;\xa0their freedom to act normally.
\n\nWhen i first started working on the camp\xa0i fell into the same trap. I was helping to build shelters, but i was also a little scared for myself:\xa0my safety, my equipment, 'getting the job done correctly'. It was only by standing back from the action and just talking to some of the camp residents\xa0who were trying to help us that i found out more about them. Many of them had been engineers or builders before they embarked on their journey to a safer life.
\n\nI realised that these people were more qualified than i was, had more reason to make sure the shelter was built well and could be trusted with our equipment because it was of great value to them that we had brought it to the camp.
\n\nI had to turn off the switch in my head that was about 'me' and truely be there for them. But it could only be done by firstly opening a dialogue, then through mutual understanding and cooperation.
\n\nAs the day went on the residents who were working with us drifted away (to do tasks like cooking, eating, prayer, preparation for the nighttime, talking to family at home/friends in other countries) and we found ourselves continuing the work as our orginal team. That was the moment that we really started to help them. We could treat this task as a job, we could committ 100% of\xa0our time and resources to finishing the job quickly, because that's why we had come out\xa0there. As a result 16 people had a drier, warmer place to sleep that night.
\n\nBut we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people.
\n\nPeople first, mission second.
", u'post_id': 665, u'date': u'2016-04-22 18:49:44'}, {u'user_id': 4, u'title': u'It should not be that hard', u'comment_id': 15984, u'content': u'Hello @dennis, welcome!
\n\nYou are \xa0a designer \u2013 you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some\xa0job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you\'ll find it!\xa0
', u'post_id': 665, u'date': u'2016-04-15 14:58:45'}, {u'user_id': 3, u'title': u'The "beneficiary" model', u'comment_id': 9249, u'content': u'Unfortunately this dichotomy between\xa0provider/\xa0receiver of services is still very common in the non-profit sector. Just look at how funding applications for initiatives supporting refugees are framed. It seems that the moment you define them as category in need- no matter the language variations, you have a problem already.
\n\nCurious if our friends in Milano who are now doing many workshops to engage with groups in the city are seeing this kind of differentiation felt at the very level of individuals who are "in need" of care? Ping @zoescope @Alberto_Simonetti, as we were lately wondering how to frame discourse..
', u'post_id': 665, u'date': u'2016-04-15 13:32:04'}, {u'user_id': 3271, u'title': u'Thank you for your kind words', u'comment_id': 22165, u'content': u'This\xa0talk is very intersting\xa0
', u'post_id': 678, u'date': u'2016-05-14 14:08:32'}, {u'user_id': 4, u'title': u'All about humans', u'comment_id': 20198, u'content': u'Great sharing, JUS team and @Omri_Kaufmann in particular!\xa0
\n\nI am out of my depth: I have been sad but never depressed, exhausted but never burnt out. I have emotions, but they never seem to become medical conditions\xa0somehow. Lucky me.\xa0
\n\nBut many people seem to think it\'s the human touch that makes the difference in care. Even the best designed sofa will not make you any less lonely.\xa0
\n\nThe point is made (towards 12.00) by @Yara_Al_Adib in this video, since you want to be inspired you will probably like it!\xa0
\n\n', u'post_id': 678, u'date': u'2016-05-10 10:56:57'}, {u'user_id': 3271, u'title': u'Thanks for sharing', u'comment_id': 18722, u'content': u'Your insights are important to team JUS.
', u'post_id': 678, u'date': u'2016-05-14 13:44:52'}, {u'user_id': 8, u'title': u'"Some days are harder"', u'comment_id': 18288, u'content': u'"Some may call it depression. Let\u2019s say I am wary about medicalisation of the human condition, so to me it is just sadness.
\n\nWhen I was younger these dips were more profound. Debilitating even. At some point a psychiatrist prompted me to take medication. I refused, opting instead to deal with what I thought might be the root causes\u2026.by\xa0changing my profession, lifestyle and social environment.
\n\nEventually\xa0I developed some resilience towards these\xa0inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don\u2019t have on having a shrink try to figure out what is the matter with me\u2026and how to fix it.
\n\nLast week, the sadness returned. This time I am unable to find solace in the work. I am unsure as to why. It is not dramatic and there is no cause for alarm. However, I\u2019ve noticed that the less time I spend on online, the better I feel. In part I think it is because\xa0communication for work purposes and to stay in touch with people about whom I care increasingly happen in the same channels. Which is not sustainable in the long run. So I am leaving Facebook, Twitter and linkedin for now. I will not cancel my accounts, but will not be checking them on a regular basis or keeping them updated.
\n\nIf you wish to stay in touch with me you have several choices:
\n\n1) To be kept up to date with information about Edgeryders, unMonastery and future projects and opportunities I am involved in building, subscribe to Nadia at Work.
\n\n2) If you are interested in reading me on more general topics like culture, tech, politics, art, religion, science, travels and life in general, subscribe to \xa0News from Nadia.
\n\n3) If you want to hang out you can always call me on skype (my alias is: niasan) or come visit me in Brussels, where I now live.
\n\nI do hope you will choose to stay in touch one way or another. To those of you who choose otherwise, thank you for the time we have spent together- I do wish you all the best and hope our paths cross again sooner rather than later.
\n\nWith love,
\n\nNadia"
', u'post_id': 678, u'date': u'2016-05-10 15:30:55'}, {u'user_id': 3271, u'title': u'Repiblishing', u'comment_id': 17299, u'content': u'We would love to hear it unless you are uncomfortable.
\n\nJUS
', u'post_id': 678, u'date': u'2016-05-10 13:41:53'}, {u'user_id': 8, u'title': u'Caring for one another in death and in life', u'comment_id': 14743, u'content': u'Hi Omri and Pauline,
\n\nthis is an interesting question. A couple of years ago I met someone whom I hadn\'t seen in a long time, a university pal. We had a long conversation about death because his Dad was unwell. Without thinking much of it I wrote a post about our encounter here. Check out the comments, you may find them of interest.
\n\nWhen younger I found it quite difficult to even acknowledge feelings let alone talk about them. Especially not if it was a space where I knew I would be meeting the same people again and again. Something about not being able to shed skin and then move on made it feel like a trap. Then something snapped last year. I felt unable and unwilling to not be sad and let others know what was going on and what I needed to be ok + how they could interact with me. I unpublished it from my personal blog, but if it\'s helpful to you I can republish it here. Let me know.
', u'post_id': 678, u'date': u'2016-05-10 10:25:24'}, {u'user_id': 3271, u'title': u'sehr gut', u'comment_id': 11024, u'content': u'
Here are the links to @NeleG original post and my own experience on sharing feelings
\n\nhttps://edgeryders.eu/en/on-being-a-self-entrepreneur
\n\nhttps://edgeryders.eu/en/jus-sharing-is-scary
', u'post_id': 678, u'date': u'2016-05-10 09:27:01'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 18856, u'content': u'Undisclosed content', u'post_id': 504, u'date': u'2016-05-14 12:17:47'}, {u'user_id': 8, u'title': u'Oh not a big event, just letting a diverse group of people know', u'comment_id': 18700, u'content': u'I just thought it would be a nice way to meet new people and just hang out in a natural, uncontrived way if people can easily invite their friends...
', u'post_id': 504, u'date': u'2016-05-13 09:10:59'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 18381, u'content': u'Undisclosed content', u'post_id': 504, u'date': u'2016-05-13 08:29:28'}, {u'user_id': 8, u'title': u'When? Maybe Create a Meetup so we can push it out?', u'comment_id': 17481, u'content': u'Hi Marie,
\n\nthis looks interesting, I am back in Berlin on the 17th-27th and would certainly join you if you did it on any day except for the 18th when I am at an all day meeting.\xa0
\n\nTo get more people on board I suggest creating an event on the Meetups page, and we can use social media to let Berlin know about it :so more people join
The instructions for how to add another event to the page are at the bottom. Ask if you need help!\xa0
', u'post_id': 504, u'date': u'2016-05-12 10:31:57'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 14906, u'content': u'Undisclosed content', u'post_id': 504, u'date': u'2016-05-10 15:21:39'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 7850, u'content': u'Undisclosed content', u'post_id': 504, u'date': u'2016-05-10 14:43:19'}, {u'user_id': 3, u'title': u'Probably Nadia', u'comment_id': 11582, u'content': u"It's not me.\xa0
\n\nThe reason should be that we need to populate channels in order to make it easier for people to browse the website and retrieve older content by looking at topics.
\n\nNow, the solution I see to not mix up non-OpenCare content with OpenCare\xa0is:\xa0if there is a way to assign older posts to groups different than Op3nCare, but still convert them into challenge responses (to benefit from channels assigned), that would be ideal!
", u'post_id': 5651, u'date': u'2016-05-14 10:38:01'}, {u'user_id': 4, u'title': u'Associating old stuff to the Op3ncare community group', u'comment_id': 9018, u'content': u'@Noemi, I assume this is you associating older posts about care to the group. This is of course OK. But some of them seem to be quite theoretical (example). Can you write here some remarks about your \xa0criteria for doing so? The number of people involved in the conversation almost doubled since yesterday, with people like Irene Lanza, SARCHA, Emiliano Fatello, FreeLab...
', u'post_id': 5651, u'date': u'2016-05-13 14:46:39'}, {u'user_id': 3253, u'title': u'Hi Noemi,\n\nagain, sorry for taking so long to ', u'comment_id': 11545, u'content': u'Hi Noemi,
\n\nagain, sorry for taking so long to reply. I\'ll\xa0try\xa0to be better with\xa0catching up on comments (somehow I don\'t seem to be getting notifications when somebody comments my post and then I forget very quickly).
\n\nThank you for your input! As you might have seen, our project group\xa0have now settled on a slightly different\xa0topic as part of the mental and spiritual resilience challenge.\xa0Still, I think we wilI keep these reflections in mind, particularly the idea of smart villages. I\'m not sure I quite understand how it works yet, I\'ll have to look into it.
\n\nYet too often our jobs starve us of what is most precious \u2014 the time and space to express who we truly are \u2014 social, curious, playful and purposeful humans. [..].\xa0We believe that there is a growing demand for smart villages where we can design our ideal balanced lives. Places where we can live in harmony with nature. We can create a safe and happy home for our families. And we don\u2019t have to sacrifice our careers and dreams to make this happen.
\n\nWe are still a little unsure what direction we are headed in, but\xa0I do think this relates\xa0to the question of emotional wellbeing and the starting point that @NeleG set with her post on the pressure to function and succeed at the risk of burnout, as well as @Omri_Kaufmann\'s thoughts on who we share our feelings with and how we might facilitate sharing with people close to us - if that is \'family\' by any definition or something else.\xa0
', u'post_id': 662, u'date': u'2016-05-13 13:53:18'}, {u'user_id': 3, u'title': u'Temporary projects/ services or complete lifestyle redesign?', u'comment_id': 7055, u'content': u'Hi @Pauline,\xa0
\n\nSince you\'re into family care I thought Alberto\'s post about 3 adult couples going into an alternative living situation together might help. They are doing this as a personal project and a way of tweaking their own needs.\xa0Here it is, let us know if\xa0you want to connect to other people who have experienced this or new models, as a way to go deeper into your design.
\n\nI don\'t know if this is about family per se anymore.\xa0Most often\xa0I hear about initiatives\xa0where you have\xa0supplementary support offered to a group - through\xa0projects that are\xa0services, like\xa0co-work/ living spaces for mobile travellers (although it\xa0doesnt get to solving the deeper care problem).
\n\nA more\xa0interesting movement I keep coming across is around\xa0downshifting and how that redefines the way we relate to the very idea of family and connections\xa0- the latest I\'ve read about is @vvorski\'s idea of @antonchernikov/you-can-read-below-or-click-here-to-download-the-official-pdf-version-4a5edff904c9#.dn0k1bb2d">smart villages, let me know if this is interesting for you:
\n\nUltimately, what we crave are more meaningful moments and life-experiences; more time to spend following our curiosity. Time to build nourishing relationships and friendships. Time to enjoy the simple things in life and really experience the world. Time to be present with our loved ones, our friends, acquaintances and the strangers we meet along the way. Yet too often our jobs starve us of what is most precious \u2014 the time and space to express who we truly are \u2014 social, curious, playful and purposeful humans. [..]
\n\nWe believe that there is a growing demand for smart villages where we can design our ideal balanced lives. Places where we can live in harmony with nature. We can create a safe and happy home for our families. And we don\u2019t have to sacrifice our careers and dreams to make this happen. We can continue to build and participate in virtual companies, occasionally travelling to cities for important meetings or conferences.
', u'post_id': 662, u'date': u'2016-04-21 11:44:19'}, {u'user_id': 3, u'title': u'Lovely to read you, Brady.', u'comment_id': 15230, u'content': u"Glad you found the time for an introduction, but no worries - drop by in any conversation whenever!
\n\nWith Op3nCare accelerating over the next months, if you're having trouble finding info, posts or people you know where to find me.\xa0I'll be happy to take you on a tour so to speak.
", u'post_id': 5646, u'date': u'2016-05-12 07:19:01'}, {u'user_id': 4, u'title': u'Respect', u'comment_id': 8149, u'content': u'The WELL is the topic of fireside stories here in Edgeryders, and it was already before we met @johncoate. So be welcome, very very welcome, here.\xa0
\n\nOpenCare and theatre must be a thing. @Alex_Levene also works in theatre. Apparently the organisation he was volunteering with at The Jungle (story here) originated in that scene, in the UK. The thinking is simple and elegant: we have admin, management and technical skills, because we are electricians, carpenters, tour managers, producers. We build things and run them under deadly time constraints. We can probably help in smoothing up the largest refugee camp in Northern Europe. Makes total sense!\xa0
', u'post_id': 5646, u'date': u'2016-05-11 10:42:05'}, {u'user_id': 1003, u'title': u'side talk ', u'comment_id': 14249, u'content': u'@Cristina_Martellosio had a nice talk with a group of lady about sex harrassment during dancing session.\xa0
', u'post_id': 5623, u'date': u'2016-05-05 12:19:11'}, {u'user_id': 3, u'title': u'Nice take on a very specific group', u'comment_id': 6845, u'content': u'Liked the way you combined a project talk with music and dancing, and with tech - seems like a good recipe for breaking the ice. Instead of bringing people to listen about OpenCare, you recreate their usual setting and infuse it with OpenCare elements for greater learning.
', u'post_id': 5623, u'date': u'2016-05-05 09:13:55'}, {u'user_id': 3, u'title': u'Community connectors as allies', u'comment_id': 14179, u'content': u'Another idea is to grow appeal and legitimacy within certain groups by bringing on board of OpenCare people who are informal community leaders, or the first who really seem to get the value of OpenCare for that group.
\n\nThen they become your liaison in that space, spokesperson or connectors on the ground who can adjust the message and keep it simple. That very much depends on the resources you have of course, just an idea. It also lowers the burden for you going in as outsiders.
\n\nIn the elderly group, maybe Mare Culturale Urbano worked as that kind of ally?
', u'post_id': 5621, u'date': u'2016-05-05 09:38:05'}, {u'user_id': 4, u'title': u'Sounds great', u'comment_id': 6720, u'content': u'Ok, thanks for this.\xa0
\n\nIn practice, all of these things struggle with the issue of incentives. I used to deal with structurally similar situations, when I was the director of a government initiative\xa0supporting creative projects in Italy\'s Mezzogiorno.\xa0The Italian govt\xa0placed\xa0a high priority on enterprise/job creation in the south. We had plenty of money. And yet, the more we tried to "do it right" (we\xa0chased\xa0fledgling entrepreneurs in small villages and underprivileged areas, we put money on the table), the more we found ourselves talking to, somehow, the wrong people. Monetary incentives brought out the sharks. Targeting vulnerable groups fostered an unhealthy relationship, with the people in question assuming a dependent relationship.\xa0Reciprocal, inclusive, sure, but how?\xa0
\n\nIn practice, we ended up doing two things. They did not constitute an elegant solution, but it was a decent hack.
\n\n@Nadia hi!
\n\nCurious if we have any link to the story, for further info?\xa0
\n\nGood luck tomorrow at re:publica <3
', u'post_id': 5618, u'date': u'2016-05-03 14:31:05'}, {u'user_id': 3, u'title': u'Caring for loved ones (Alzheimer, dementia..)', u'comment_id': 33764, u'content': u'Thanks for sharing this @HoneyMk, I was very impressed by Philipp\'s grandparents\xa0story (is he @makerphil?), which tells things so many of us experienced, albeit not to the same degree.. my family\xa0had to take care for 5 years of my grandmother, who also suffered from dementia.
\n\nShe was lucky because she had a large family and they all shouldered this, but for the two people who lived side by side with her it was immensely difficult. I don\'t know if it has to do with the medical infrastructure in a place, but where I come from it\'s always the family who takes care of ill members, never long term professional services, mostly out of duty and love.
\n\nYou say you don;t know how it has affected your life, \xa0but maybe you know how it has affected your mom\'s life? To give you an idea, my family was so unprepared to cope with this that the new roles they were finding themselves in completely messed up the family. It had\xa0to do with matriarchal/ patriarchal figures not being so present anymore and then younger ones having to cope with a ton of things and make decisions that they felt unprepared for.\xa0
\n\nA takeaway point from your story: love and laughter, the authentic ones, make for an important variable in any care relationship, just to keep that in mind.
', u'post_id': 33726, u'date': u'2016-04-25 11:39:24'}, {u'user_id': 4, u'title': u'In practice, though...', u'comment_id': 7849, u'content': u'Well, hard to disagree with what you write here. I am curious about the\xa0practice\xa0of care, though. What does it look like for you? How do you personally give and receive care? Is it babysitting for a friend? Is it spending time with a sick relative? How does that experience influence your views?
', u'post_id': 668, u'date': u'2016-04-25 09:18:50'}, {u'user_id': 3, u'title': u'Working in groups?', u'comment_id': 7803, u'content': u'Hi @Cindy_P., are you working with @Luisa by any chance? I see she has posted an almost identical challenge.\xa0
\n\nAlso, @makerphil was asking something similar and I offered an example of a (public) happening and eyecontact experiment.
\n\nHow can we, others in the community, help?\xa0
', u'post_id': 669, u'date': u'2016-04-25 07:13:12'}, {u'user_id': 3, u'title': u'Does your personal experience help your thinking?', u'comment_id': 16089, u'content': u'@Cindy, I was reading on your user profile about the support you get from the family you work for. Does this more positive experience reveal new approaches in your design? Or can those people on the "right" side of the debate also offer helpful insights? The advantage is that they can relate to both German peers and foreign peers, and so have more complete information.\xa0I would think\xa0they can become bridge builders in a solution design.
', u'post_id': 663, u'date': u'2016-04-17 10:10:56'}, {u'user_id': 3250, u'title': u'Undisclosed content ', u'comment_id': 12342, u'content': u'Undisclosed content', u'post_id': 663, u'date': u'2016-04-24 21:23:00'}, {u'user_id': 3250, u'title': u'Undisclosed content ', u'comment_id': 11090, u'content': u'Undisclosed content', u'post_id': 663, u'date': u'2016-04-24 21:15:12'}, {u'user_id': 4, u'title': u'So why?', u'comment_id': 9446, u'content': u'Hello @Cindy. Great to read about your discussion there. So, what\'s your conclusion? Why do people who stay react badly to people on the move? How do you think you can turn fear into trust? And is fear really the right word?
', u'post_id': 663, u'date': u'2016-04-16 16:58:46'}, {u'user_id': 4, u'title': u'Exactly', u'comment_id': 21856, u'content': u'Welcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\xa0
\n\nBut what do you mean by "skilled and well placed partners who are willing and able to act as brokers within the system to get things done"? Do you have any example in mind?
', u'post_id': 4913, u'date': u'2016-04-23 14:06:46'}, {u'user_id': 3268, u'title': u'Undisclosed content ', u'comment_id': 20113, u'content': u'Undisclosed content', u'post_id': 4913, u'date': u'2016-04-23 11:59:09'}, {u'user_id': 4, u'title': u'Some broken links...', u'comment_id': 17235, u'content': u'Thanks @CommonFutures, good tip. I\'d like to get in touch with them. Unfortunately, the "health" link from that page to a more detailed breakdown of the services offered is broken (http://salut.cooperativaintegral.cat/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\xa0
', u'post_id': 4913, u'date': u'2016-04-23 14:09:33'}, {u'user_id': 1485, u'title': u'Cooperative Integral Catalunya', u'comment_id': 16546, u'content': u'Interesting - thanks - another example which might be worth a look:\xa0http://cooperativa.cat/en/cooperative-public-system/health/\xa0
', u'post_id': 4913, u'date': u'2016-04-19 11:17:25'}, {u'user_id': 1442, u'title': u'Care beyond the concept of "clinic" and hospital', u'comment_id': 10231, u'content': u'Hi all,
\n\ninteresting example, the self-organizing of the greeks.
\n\nI would push the concept a bit further.
\n\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I\'m sharing with you is the one he did at Mayo clinic and it\'s worth a watch:
\n\n\n\n(here\'s a infovis he shows in the video about Obama Care\xa0http://kevinbrady.house.gov/uploadedfiles/obamacarechart.pdf )
\n\nHe explains how\xa0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.
\n\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.
\n\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you "deliver" like a pizza.\xa0
\n\nCommunities need to be nurtured and supported and it\'s by being "in them", not by doing things "to them" that change happens.
\n\nI didn\'t have time to look for documents of his research, but im sure there\'s something more on the topic, we could collect.
\n\nbest
\n\nZoe
', u'post_id': 4913, u'date': u'2015-10-26 11:56:16'}, {u'user_id': 4, u'title': u'Go right ahead!', u'comment_id': 25882, u'content': u'No friction, Costa. I already wrote that you (and Luce, and any other designer out there) is welcome to go ahead and improve things. That\'s really not a problem. My comment is titled "Thank you", and I mean it.\xa0
\n\nIn the call, we have been discussing something that is much more worrying to me, and does have the potential for friction: this project, as most European research projects, risks losing coherence, as\xa0partners drift apart form each other. I wrote about this already last week, and hopefully\xa0we can discuss it in the next call. I just wanted to signal that, in my opinion, this a much more important risk than the landing page, and that it deserves much more of your attention.\xa0
', u'post_id': 5570, u'date': u'2016-04-20 11:56:57'}, {u'user_id': 8, u'title': u'Explicit communication, pace and active participation.', u'comment_id': 25554, u'content': u'This is a fast moving project- online engagement/social dynamics have a pace of their own and do not follow anyone\'s schedule. It is like riding a wave, it\'s up to you to stay on top of things.\xa0If you don\'t make a convincing case, or concrete enough suggestion\xa0in a timely manner then things move on. Some general/vague requests were made from your side. A counterproposal was posted. No response: neither questions asked from your side nor a suggested alternative time/date for follow-up discussion. And then: "\xa0it\'s\xa0not our primary role, we try to raise question and issue (plan a) if nothing happens we make some extra work (plan b)" \xa0- To me it signals you want the kind of hand-holding which no one can afford.\xa0
\n\nYou would not be the first person to have a hard time keeping up with the fast pace with which we get things move. It\xa0is up to each one of us to\xa0take individual responsibility for staying on top of things:
\n\nRegarding your demands/questions/complaints:
\n\nyour timing proposal was a little passive-aggressive\xa0
\n\n"and send it to me by the end of the week"
\n\nalso considering the we (me and zoe) pointed out that we where in China.\xa0
\n\nOver this there is also\xa0other consideration:\xa0
\n\nhard to be precise on little task / topic (as the landing page is) without a clear big picture view
it\'s a moving target (the development of the community site was "unscheduled" from our point of view)\xa0
it\'s\xa0not our primary role, we try to rise question and issue (plan a) if nothing happen we make some extra work (plan b)
The point is still:\xa0
\n\nI expected some concise and understandable explanations about the Outreach strategy for a while then I tried to rise the flag kindly posting this post.\xa0 - See more at: https://edgeryders.eu/en/opencare/strategy-wp1-and-wp2#sthash.kM2CkDjf.dpuf
', u'post_id': 5570, u'date': u'2016-04-20 10:42:29'}, {u'user_id': 8, u'title': u'Timing. 29 days to respond/propose alternatives?', u'comment_id': 25269, u'content': u'"If you are unhappy with that landing page, by all means produce a new landing page and all the related pages (design, copywriting, concept etc) and send it to me by the end of the week. We can do an A/B test for the landing page and loo[k] at conversions. But I require the answers [t]o the questions I and Noemi have already asked, but not yet recieved responses to."
\n\nhttps://edgeryders.eu/en/comment/22041#comment-22041
', u'post_id': 5570, u'date': u'2016-04-20 08:13:47'}, {u'user_id': 1003, u'title': u'being short - keeping my resources', u'comment_id': 24623, u'content': u'Hi @Alberto,\xa0
\n\nyou rember well the empiric law\xa01000-100-10.
\n\nAs we\'re using the social network to interact with the future, the\xa0possible, the\xa0not-already-here community, we have to talk in many\xa0linguistic registers as wide as possible.
\n\nIf you want to filter out people from first layer, this is not our case.
\n\nThese years of makerspace activity taught us how to be as inclusive as possible, and try to lower the barriers to participation and engagement . We\xa0keep triyng and we \xa0improve every day how\xa0to do it.
\n\nSleakness has not to be a "commercial" thing. it is just effective.
\n\nI don\'t really understand your friction\xa0and here we\'re talking of minor changes and improvement considering that\xa0@alessandro_contini and @Moushira have some experience too in user interface and community management.\xa0
\n\n(not using more time on this in order to be efficient)
', u'post_id': 5570, u'date': u'2016-04-20 06:45:07'}, {u'user_id': 3, u'title': u'Mea culpa.', u'comment_id': 23244, u'content': u"You're right, sorry. Alberto was present last week, hence the confusion.
", u'post_id': 5570, u'date': u'2016-04-20 05:42:07'}, {u'user_id': 1003, u'title': u'Alessandro Contini != Alberto Simonetti', u'comment_id': 23180, u'content': u'Alessandro Contini @alessandro_contini \xa0was present in the last conference call and also during the consortium meeting in Brussels.He works for WeMake.\xa0
\n\nAlberto Simonetti @Alberto_Simonetti was not present in the last community call. He works for Comune di Milano.\xa0
', u'post_id': 5570, u'date': u'2016-04-20 05:03:45'}, {u'user_id': 2464, u'title': u"imho, it's more about legibility at first sight", u'comment_id': 22370, u'content': u"It's not that much\xa0about being commercial or non-commercial. Having an entry point that solely bound to the OpenCare project name is a plus, just as having info about how's who in a glimpse. (And I won't hide you it is useful on the admin/reviewing side.)
", u'post_id': 5570, u'date': u'2016-04-19 13:40:58'}, {u'user_id': 4, u'title': u'For the record', u'comment_id': 21399, u'content': u'I am grateful to @Alberto_Simonetti, @Moushira and @LuceChiodelliUB for input. But\xa0I implore you: do not\xa0spend more than a few hours on it.\xa0When all it\'s been said and done, OpenCare is\xa0a difficult project.\xa0It requires\xa0very active\xa0participation from people. Doing landing pages might help incrementally, but will not change this situation.\xa0
\n\nCommercial design techniques are a bad match for this kind of problem, because they assume that "the user" has a 20 seconds\xa0attention span (Alberto mentioned an exact number, which might even be smaller, I forgot what it was), and requires immediate gratification. It also assumes, critically, that each "user" that walks away is a loss to the project. In a commercial setting, all of this is true, because the "user" is there to be shown advertisements.
\n\nThe OpenCare kind of stuff assumes that the "participant" is an intelligent adult, who is measuring up with a big problem and enjoys the challenge. She is not scared of ugly interfaces and even command-line ones. She understands that it will take hours of deep reflection and engagement to even make meaningful contribution, let alone solve anything. And if she is not prepared to do that, she\xa0should\xa0walk away. We are doing no favour to her, nor to ourselves, by keeping people engaged who do not like our terms of engagement.\xa0
\n\nThis experience, at least for me, goes back to 2008 (Costantino remembers Kublai, and that in turn stood on the shoulders of a simpler projects in 2006-2007).\xa0What I have learned is that smart, committed people gravitate to smart, committed people: that a challenging environment repels some, but signals to the others that they are being treated as thinking adults, and brings out the best in them; and that there is no way to build engagement other than handholding, seeking out actively the smartest people\xa0and leading by example \u2013 for example uploading your own care stories onto the platform. And\xa0that\'s\xa0where the bulk of your time and effort should go. Not artifacts, but process: community management and dogfooding.
\n\nMeanwhile, plenty of Euro projects have tried all sorts of designs and failed miserably to attract any kind of real engagement. The extent of this failure is hard to believe. It basically tanked a whole program, called E-Participation\xa0(paper). Meanwhile, Edgeryders \u2013 for all its faults \u2013 was avoiding these pitfalls. This is why we were mentioned as an example in the working paper by Fabrizio Sestini, the CAPS program officer, and the overall failure of E-Participation\xa0is one of the reasons\xa0why CAPS looks the way it does. I really\xa0do not recommend to walk the same path as the (smart, professional, motivated) people in E-Part.\xa0
', u'post_id': 5570, u'date': u'2016-04-19 11:48:00'}, {u'user_id': 4, u'title': u'Thanks! ', u'comment_id': 17988, u'content': u'Thanks, @eirinimal, definitely worth trying out.\xa0
', u'post_id': 5570, u'date': u'2016-04-19 11:20:18'}, {u'user_id': 3259, u'title': u'Undisclosed content ', u'comment_id': 16440, u'content': u'Undisclosed content', u'post_id': 5570, u'date': u'2016-04-19 10:23:51'}, {u'user_id': 8, u'title': u'Sweet :)', u'comment_id': 13531, u'content': u'It\'s lovely Luce, thanks for taking the time to put it together.
\n\nI\'ll have a look in a couple of hours how to incorporate some of the elements onto http://opencare.cc
', u'post_id': 5570, u'date': u'2016-04-20 14:44:44'}, {u'user_id': 3202, u'title': u'Undisclosed content ', u'comment_id': 12711, u'content': u'Undisclosed content', u'post_id': 5570, u'date': u'2016-04-20 07:52:41'}, {u'user_id': 3, u'title': u':-)', u'comment_id': 11974, u'content': u'Hi @LuceChiodelliUB, thanks for sharing your work with us. So it seems we have a bunch of designer heads around
Myself, I am not one, so I basically welcome all these proposals if you think they speak better to the communities we have to engage. What\'s important is that they link to the conversation website on edgeryders\xa0and attempt to bring people in, so that\xa0we\'re not putting too much effort in\xa0informative\xa0materials, but keep focusing on their engagement function. Of course, engagement can mean different things to us partners.\xa0The way I see OpenCare is that we don\'t need to speak to a general "public", there is no public. There are people who could be community members, contributors etc, and landing pages\xa0should speak to them. The way we quantify online engagement is by site visits and conversion into online activity posts and comments. One thing proposed at the call was to test these pages and measure the results after some time.\xa0
\n\nAnyway, hope you guys can agree on this.
', u'post_id': 5570, u'date': u'2016-04-19 12:00:24'}, {u'user_id': 3074, u'title': u'OpenCare landing page', u'comment_id': 9962, u'content': u'@Costantino\xa0/\xa0@zoescope\xa0/\xa0@Cristina Martellosio /\xa0@markomanka\xa0/\xa0@MassimoMercuri / @Luciascopelliti\xa0/\xa0@Rossana Torri\xa0/\xa0@Lakomaa\xa0/ @melancon /@Alberto /\xa0@Nadia /\xa0@Noemi /\xa0@Moushira
\n\nHello everyone,\xa0
\n\nIt\'s a shame I missed this community call, because, ahem, well... I starting creating an OpenCare landing page myself. I developed it recently to see what and how we could do to provide info on the project to the public.
\n\nI had hoped to present it to you very soon, once its layout would have been done for good - but since you mention it, why not discussing it right now and see how we can go.
\n\nThe page has some of the criteria you listed so far, and can still be developed. It is still under construction (need to add a footer with all credits / logos etc. for example), but the structure and the pages are done. Every information you see on the pages are excerpts from OpenCare\'s Description of Action (Annex 1 GA).
\n\nYou can visit it here:\xa0https://www.labri.fr/perso/lchiodel/opencare/
\n\nIt is a Wordpress-based website, which I did with my very modest means.\xa0
\n\nI share it so that we may either further use it and develop it at a higher level or get inspired from it.
\n\nFor now it is hosted on my personal website at the University of Bordeaux, but the website and its back office can be transfered to another server anytime.
', u'post_id': 5570, u'date': u'2016-04-19 09:54:11'}, {u'user_id': 4, u'title': u'Here is a recap', u'comment_id': 30179, u'content': u'I re-read the proposal (recommended, it\'s very very useful) and put together a short description of the engagement strategy, mapped onto the delivery structure contained in our Grant Agreement:\xa0
\n\nhttps://edgeryders.eu/en/opencare-research/the-opencare-engagement-strategy-at-a-glance
\n\nI hope that\'s clearer now.\xa0
', u'post_id': 5470, u'date': u'2016-04-20 12:51:23'}, {u'user_id': 8, u'title': u'Specific questions?', u'comment_id': 29657, u'content': u'The weekly calls and the documentation from them\xa0is how we fine tune coordination and align our various efforts.\xa0
\n\nThis where we discussed outreach including dates: https://edgeryders.eu/en/opencare-research/hangout-4-planning-open-care-outreach-efforts
\n\nThis is the guide for how we build the online community:\xa0https://edgeryders.eu/en/opencare-research/guide-for-building-the-opencare-online-community
', u'post_id': 5470, u'date': u'2016-04-20 08:34:27'}, {u'user_id': 1003, u'title': u'collecting bits of information', u'comment_id': 29362, u'content': u'Hi,\xa0
\n\nonly now we\u2019re starting to understand the implementation of these actions.\xa0
\n\nThis approach was\xa0really hard to understand\xa0for many reasons:\xa0
\n\nduring the consortium meeting you announced to us that you\u2019re working on a bunch of documents and a prototype of the websites
during the last weeks there were some posts asking for feedbacks on single pieces of this bigger plan (not having the proper feedback as you probably noticed)\xa0
the folder Op3nCare Outreach and Engagement in the Opencare consortium shared Drive was not visible (at least to me) not giving me the opportunity to see that all these documents (and feedback) was part of a bigger thing
During the consortium meeting we explained to you WeMake\u2019s roadmap, doing our best to summarize at least the \xa0following\xa0months (these months) in a single slide of our presentation
\n\n\n\nI expected some concise and understandable explanations about the Outreach strategy for a while then I tried to rise the flag kindly posting this post.\xa0
\n\nI think that we really need to have some moments or tools or format (written or live) to let the other\xa0partners be informed about the next months implementations of the project having the 10 miles overview in order to allow us to plan participation.\xa0
\n\nWe, as a consortium,\xa0have already planned the next open call of\xa0April 28th.\xa0
\n\nI hope to find better (in terms of effectiveness) and more fluid (frictionless) information strategy. \xa0
\n\nCostantino
', u'post_id': 5470, u'date': u'2016-04-20 06:29:09'}, {u'user_id': 8, u'title': u'Link to Guide for building online community is broken', u'comment_id': 28621, u'content': u'https://edgeryders.eu/en/opencare-research/guide-for-building-the-opencare-online-community
', u'post_id': 5470, u'date': u'2016-04-20 11:59:55'}, {u'user_id': 3, u'title': u'A How To', u'comment_id': 28215, u'content': u'Hi all, first thanks for your\xa0points addresing\xa0the online spaces and where\xa0we lack clarity. Listening to the comments, like @Massimo says, is a first step forward.
\n\nAs the person primarily responsible with community management -\xa0includes the\xa0OpenCare people already\xa0on Edgeryders but also new ones in the team and the broader network - I am putting together a community management plan that helps us:
\n\n1) navigate the project space ourselves (a routine as per Zoe\'s suggestion in Brussels; incorporate also hash-tags as per Costa\'s suggestion)\xa0
\n\n2) understand how to welcome new people\xa0(we are all community builders in OpenCare and I suspect we\xa0will learn to do it better and better, even if you don\'t yet see yourselves as such).
\n\nIt is here:
\n\nhttps://edgeryders.eu/en/opencare/guide-for-building-our-online-community (check for a consistent version on April 1st)
\n\nIt should\xa0be more relevant as we finish the\xa0public participation space (Op3nCare) where simple information will be posted to help you guys welcome people into the project. But that is dependent on your answers to the questions listed by Nadia above.. so looking forward!\xa0We will slowly\xa0move into our team routines as that info becomes clearer.
', u'post_id': 5470, u'date': u'2016-03-23 13:01:38'}, {u'user_id': 8, u'title': u'Redirect domain vs redo a lot of work', u'comment_id': 27194, u'content': u'We are not going to change all the content of the opencare group. What we can do is redirect the opencare.cc domain so it points to https://edgeryders.eu/en/op3ncare/home
\n\nRegarding categorisation/ structuring of the workspace this is on the way, but the priority is finalising all the content of the public facing website i.e this: https://edgeryders.eu/en/op3ncare/home
\n\nIf you are unhappy with that landing page, by all means produce a new landing page and all the related pages (design, copywriting, concept etc) and send it to me by the end of the week. We can do an A/B test for the landing page and loo at conversions. But I require the answers o the questions I and Noemi have already asked, but not yet recieved responses to.
', u'post_id': 5470, u'date': u'2016-03-21 21:45:12'}, {u'user_id': 1003, u'title': u'Namig', u'comment_id': 26604, u'content': u"I know it's not super super\xa0\xa0important but I suggest to go with\xa0
\n\nOpencare (main site)\xa0
\n\nand\xa0
\n\nOp3ncare as\xa0Project Workspace
\n\nif my previous proposal of having topic/hashtag or onother kind of structure of this\xa0workspace is not possible or very difficult. \xa0
\n\nAs said before: I'll priorityse a simple streamline page with as less (and clear) information as possibile and enrich it along these week. agile.\xa0
", u'post_id': 5470, u'date': u'2016-03-21 20:34:18'}, {u'user_id': 8, u'title': u'NB curt responses today', u'comment_id': 25610, u'content': u'Attention being pulled in multiple directions because of Brussels incidents. Tone reply /= anything other than need for speedy comms.
', u'post_id': 5470, u'date': u'2016-03-22 13:47:49'}, {u'user_id': 8, u'title': u'During LOTE5', u'comment_id': 25578, u'content': u"I think it was during the actual consortium meeting. 16:30 CET is a time that works well across several timezones. \xa0I am hosting the weekly calls and\xa0only working one day a week on OpenCare. If you prefer the Monday instead that is also an option. I don't care which day, only that it is the same day same time every week otherwise things get very messy very quickly. And early in the week = can plan for rest of it.
", u'post_id': 5470, u'date': u'2016-03-22 13:42:10'}, {u'user_id': 1442, u'title': u'when was agreed?', u'comment_id': 25518, u'content': u'unfortunately\xa0i\'ll never be able to participate\xa0because I have a similar call for another project on the same day of the week at same time
when did the decision take place\xa0and in which thread? You say "we" meaning the consortium or edgeryders?
\n\nbest
\n\nZoe
', u'post_id': 5470, u'date': u'2016-03-21 22:09:22'}, {u'user_id': 8, u'title': u'Calls are tuesdays at 16:30 CET', u'comment_id': 25314, u'content': u'This is the time we have agreed we can be available. Any and all topics for discussion can be had during those calls. They are for the coordination of the work, but in the spirit of truly open those calls are open for anyone who wishes to drop in. If there are questions or ssues or things to work on together, that is the available slot. We do this to cut down coordination costs, doodles etc. Same day same time every week.
', u'post_id': 5470, u'date': u'2016-03-21 21:50:14'}, {u'user_id': 8, u'title': u'Open Project', u'comment_id': 24737, u'content': u'With respect to web presence there are two separate but linked spaces
\n\nA\xa0 Project Workspace ( internal/team\xa0communication): https://edgeryders.eu/en/opencare
\n\nA Project Participation Space (communication to involve new people and understand more about the project) : https://edgeryders.eu/en/op3ncare/home
\n\nIn order to finalise and be able to go live with the Project Participation Space, we need\xa0 to ensure that we have a coherent engagement engine to power participation in it.
\n\nFrom you and all the other partners we need to understand the following
\n\nDuring consortium meeting we discussed about weekly online meeting and we decided not to have them.
\n\nThat's why I interpreted the weekly google hangouts you proposed ,as meeting you were organizing for new people to be involved, and not internal meeting.
\n\nIf we want to discuss specific topics let's do a doodle to see when's the best moment to hangout.
\n\nI agree with Costantino on the fact that\xa0 it would be very important for communication strategy to allow people to distinguish\xa0what is internal/team\xa0communication and \xa0what is communication to involve new people and understand more about the project. That's\xa0because we, as a consortium team, are developing a specific language and insights discourse\xa0that are becoming often unclear to whom are not in the topic or didn't follow the discussion since the beginning.\xa0\xa0
", u'post_id': 5470, u'date': u'2016-03-21 07:41:15'}, {u'user_id': 1003, u'title': u'next hangout', u'comment_id': 19616, u'content': u'Hi @Nadia,\xa0
\n\non Tuesday afternoon me and @zoescope\xa0will be on a plane to Shenzhen.\xa0
\n\nI really understand that we all (see\xa0https://edgeryders.eu/en/opencare/open-care-as-radical-socio-technical-innovation-reflecting-on#comment-22016) are talking of core things.\xa0
\n\nBut I really appreciate something like a clear (or at least simple, essential) landing page that can be not scary for \xa0newcomers. \xa0
\n\nIs the work in progress in the Op3ncare section goes in that direction?\xa0
\n\nThe landing page on the workspace right now is pretty confusing
\n\nI\'m not good to design these\xa0 kind of things but the friction to jump in is a little too high in\xa0my opinion.\xa0
\n\nAbout this I\'d suggest:\xa0
\n\nlet\'s focus on a streamline landing page with the essentials. Later on we\'ll implement all the add-on information that will came from the further advancement.
\n\nOne last thing about the Topic/Room that i suggest to implement in some way in the workspace. The flow of the posts is very very diverse (from admin issue, to strategic and core discussion, to Local Activity ....) and therefore, in my opinion, messy. \xa0Is there a way to have topic / hashtag to differentiate the view for a general public?\xa0
', u'post_id': 5470, u'date': u'2016-03-20 21:08:59'}, {u'user_id': 8, u'title': u'Join the call next week?', u'comment_id': 16915, u'content': u'Hi Costantino
During the consortium meeting I suggested could do a fellow ship program as a way of acknowledging and rewarding different kinds of participation in the project. The above\xa0 are the components of information that need to be in place in order for a participant to understand the project and know how to participate in it if we are going to go ahead with the Fellowship. But I feel that we did not get a clear response as to whether the rest of the partners are behind this or not...including weMake?
\n\nNoemi and I proposed that we ought to run theme-issue focused campaign, and started discussing some possible topics. Halfway through I realised that something was still missing.\xa0 I came to London to connect with Patrick, test some ideas I had and to have a deeper conversation with Ezio about direction and curation. I have summarised what I think I understood from our conversation here: https://edgeryders.eu/en/comment/22010#comment-22010
\n\nSo perhaps it is time to join one of the call to tighten up coordination of communication and engagement efforts?
', u'post_id': 5470, u'date': u'2016-03-19 12:17:37'}, {u'user_id': 3074, u'title': u'Thanks Costantino for summarizing it all !\n\nCan you ', u'comment_id': 10527, u'content': u'Thanks Costantino for summarizing it all !
\n\nCan you please ask to your post\xa0the following info related to the Consortium?
\n\nhttps://edgeryders.eu/en/opencare/opencare-domain-names-and-trademark
\n\nhttps://edgeryders.eu/en/opencare/consortium-qa
\n\nLuce
', u'post_id': 5470, u'date': u'2016-03-18 10:47:03'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 16721, u'content': u'Undisclosed content', u'post_id': 661, u'date': u'2016-04-19 20:12:46'}, {u'user_id': 3, u'title': u'"Culture in culture"', u'comment_id': 8668, u'content': u'Heya, thanks for the piece of thought.\xa0
\n\nIt reminded me of the story of Rete G2 shared by @Medhin_Paolos some time ago about second generation migrants in Italy who were organising themselves at the grassroots level - although the movement was meant to\xa0advocate for their citizenship rights, it seemed to be equally so\xa0about building bridges. They \xa0did so by producing cultural artifacts that illustrate at deeper levels issues of identity. Here\'s the story, although I\'m curious\xa0how it\'s doing nowadays..\xa0\xa0
\n\nI find that food and\xa0arts are great equalizers in terms of making room for different identities to co-exist in a way that birthes new ones.
', u'post_id': 661, u'date': u'2016-04-13 19:07:43'}, {u'user_id': 2464, u'title': u'Good work', u'comment_id': 31691, u'content': u'Thanks Luce for reporting on the successfull submission of deliverable 2.1
\n\nIt\'s not as if I did not know about it I added a few words myself to the accompanying document. I invite all to have a look, the few additions I made to Nadia and Alberto\'s text aimed at facilitating the work of reviewers: helping them to get the idea, identify the relevant resources and in this case easily access them on the web.
WP2, Deliverable 2.1:\xa0Deployed, tested OpenCare online space on the production server - SUBMITTED
A copy of the document is stored under the OpenCare Admin file, see Deliverables.
', u'post_id': 5485, u'date': u'2016-04-18 14:52:51'}, {u'user_id': 8, u'title': u'We decided to prioritise the work of doing outreach', u'comment_id': 30986, u'content': u'As part of our outreach and engagement work, Edgeryders brokered an agreement with\xa0the College of Architecture, Media and Design at Berlin University of the Arts (UdK Berlin) around a new course in which we involve students in the OpenCare research project:\xa0http://hackingutopia.cre8tives.org/about/
\n\nThe agreement was finalised in mid february. While the website was already online by then as agreed, we decided to prioritise preparation of the course as an effective outreach and engagement opportunity and to finalise validation of the website design and contents based first experiences of using it as the primary collaboration, interaction and documentation space for the course activities. My documentation from the first day of the opening 4-day workshop:\xa0https://edgeryders.eu/en/you-and-me-and-everyone-we-know-the-many-faces-of-care
\n\nThe Final exhibition has now been announced http://www.designtransfer.udk-berlin.de/en/projekt/hacking-utopia/
\n\nExhibition has now been announced here: \xa0
', u'post_id': 5485, u'date': u'2016-04-13 13:36:32'}, {u'user_id': 3074, u'title': u'One last thing to do', u'comment_id': 30872, u'content': u'Hello,\xa0
\n\n@Alberto /\xa0@Noemi /\xa0@Nadia:\xa0I get back at you about the deliverable, again: we also have to justify our delay upon submitting it.
\n\nI will therefore need you to explain in a\xa0paragraph why links to the OpenCare platform are submitted in in April instead of February (planned in the DoA).
\n\nAs I already posted, it sounds acceptable to explain\xa0that the platform was mainly ready in due time,\xa0that edgeryders introduced it during\xa0the kick-off by the end of February, with extra adjustments related to users\' experiences being carried out in March.\xa0
\n\nYou also have to describe the\xa0impact this delay has on your activity as foreseen for WP2 (using more person-months, needing extra staff, or else).
', u'post_id': 5485, u'date': u'2016-04-13 12:38:31'}, {u'user_id': 3, u'title': u'Thanks for the suggestion', u'comment_id': 30437, u'content': u"Added on the Op3nCare\xa0homepage! I guess I was expecting this wiki\xa0to reach more structure and consistency. If there are things we're missing or questions we should answer in it don't hesitate to add them.
", u'post_id': 5485, u'date': u'2016-04-09 11:34:53'}, {u'user_id': 2915, u'title': u'I found it on the other OC page', u'comment_id': 30299, u'content': u'https://edgeryders.eu/en/op3ncare-community/resources
\n\nI have to admit I get them sort of mixed up. \xa0But I can also see that if you go to the ER homepage, then click projects you can see the two choices. \xa0But now I would say, given the importance of OC, why not put a discreet link to it righ there on the first page and avoid that extra clicking?
', u'post_id': 5485, u'date': u'2016-04-08 18:11:00'}, {u'user_id': 2915, u'title': u'Make this wiki more prominent?', u'comment_id': 29521, u'content': u'Given its improtance, shouldn\'t this wiki be linked around\xa0the top of the\xa0OpenCare Research page? \xa0ALso, I would put a link to Nadia\'s recent presentation someplace prominent as well.
\n\nAs Guy said about what reviewers want and don\'t want, it\'s also crucial to always remember how fresh eyes will see the site and what actions\xa0they are likely to take once they get here.
', u'post_id': 5485, u'date': u'2016-04-08 17:47:57'}, {u'user_id': 3074, u'title': u'Great !', u'comment_id': 29036, u'content': u'I\'ll double-check and submit it
Thanks again,\xa0
\n\nLuce
', u'post_id': 5485, u'date': u'2016-04-12 12:05:26'}, {u'user_id': 3, u'title': u'This iteration done!', u'comment_id': 29028, u'content': u'ping @LuceChiodelliUB as agreed yesterday.. hope it helps. I checked the links again and it seems they\'re all working, but won\'t hurt to have another couple of clicks when submitting, just to be sure.
', u'post_id': 5485, u'date': u'2016-04-12 10:28:21'}, {u'user_id': 3074, u'title': u'Ready to go?', u'comment_id': 29010, u'content': u'Hello,\xa0
\n\nAs I see you keeping the wiki updated - just\xa0tell me when we are good to go with the delivery to the EC. Thanks !
Thanks for updating the wiki with more relevant info. The dashboard\xa0was meant to be\xa0a nice page/visualization with all the places people can engage with. At the moment this is probably all the community space - with its different pages. Scraping the formulation from the wiki then.\xa0
', u'post_id': 5485, u'date': u'2016-04-07 11:16:55'}, {u'user_id': 4, u'title': u'Questions on the wiki', u'comment_id': 28433, u'content': u'I have done a first editing pass. I have some question.
\n\nThe most important: we are now live, but our consent funnel is not ready. ScImpulse has designed it, but not yet deployed. Is this OK? @markomanka, what do you say as the person in charge of ethics?
\n\nGeneral question: it seems the wiki is written with the OpenCare team in mind, but in the beginning it says\xa0
\n\nThe purpose of this document is to help OpenCare project team and members joining edgeryders.eu [...]
\n\nLess important: what do we mean by\xa0ENGAGEMENT TOOLS WE ARE USING - DASHBOARD? There is no dashboard other than this, but that has got nothing to do with social media, meetups etc. I propose to eliminate that.\xa0
\n\n@Noemi I think you are the author....
', u'post_id': 5485, u'date': u'2016-04-07 08:54:36'}, {u'user_id': 4, u'title': u'Agree', u'comment_id': 27305, u'content': u'Ok, settled then:
\n\nGuy, I agree with you, we have to put ourselves in the reviewers' shoes when we have to submit information on the project to the Commission.\xa0
\n\nAlberto, if you wish to\xa0use the content of this wiki, this is fine with me,\xa0but my point is the following: this mini-presentation \xa0is also a mean now to come clear to the Commission but also to the public\xa0about the scientific interest of putting up this platform.
\n\nWhen I mean public, I do think of the people already following the project, who may find the wiki just fine, but I also think that each partner could\xa0further use this documentation to bring people here together, using our own networks.
", u'post_id': 5485, u'date': u'2016-04-07 07:52:30'}, {u'user_id': 2464, u'title': u'Well then --', u'comment_id': 25632, u'content': u'-- we are on the same wavelength (sounds French, "sur la m\xeame longueur d\'ondes"). I shouldn\'t be surprised after all A two-pager\xa0wiki works fine. @LuceChiodelliUB maybe can build a short printed (pdf) document describing the resources (what\'s in there, and\xa0how/where to find them)\xa0to be uploaded through EMDesk.
Anyway the point\xa0I make remains relevant for all subsequent deliverables. Adopting a reviewer-compatible standpoint makes reviewing material more efficient.
', u'post_id': 5485, u'date': u'2016-04-07 07:41:10'}, {u'user_id': 4, u'title': u'We have that', u'comment_id': 25619, u'content': u'You misunderstand me, Guy. I propose to point [reviewers, the Commission] not to the platform itself, but to this wiki. Which is a 1200 words document that describes the processes \u2013 exactly your two pager. But with one advantage: we need it anyway, so it is in our best interest to\xa0write it clearly. This gets us rid of the hollow feeling of writing a deliverable that no one cares about, just another box ticked, that I have sometimes felt when doing funded research.\xa0
\n\nMakes sense now?
', u'post_id': 5485, u'date': u'2016-04-07 07:29:00'}, {u'user_id': 2464, u'title': u'See things as a reviewer', u'comment_id': 25594, u'content': u'Here is my view of things, and I am sure this is what Luce has in mind when asking any of us to provide reviewing material. @Alberto @Nadia @LuceChiodelliUB
\n\nThe idea is to go as smoothly as possible with the reviewing process. The platform and its content -- as suggested by Alberto -- of course tells the story by itself, it\'s all there ! And it is a living thing, you see the organism in full if you take time to look at it in action.
\n\nBut, but,\xa0reviewers (and I ask you to believe me, I\'ve played that role quite a few times).\xa0You have to put yourself in the skin of a reviewer when deciding what/how/why to deliver. Think of this person, reading about OpenCare a week before the review (sometimes more, but reading ahead of time doesn\'t mean\xa0giving more time reviewing the project). Think of this person who wants to get information in a synthesized way, yet who wants to get a "feeling" about what\'s going on.
\n\nSo, my take is, it\'s worth to put up a short, crisp, one or two pager that gives an overview of the deliverable. That tells this person where to go on the portal and what is to find there. You guys are professionnals at communicating ideas with so much enthusiasm. I am sure you all know what I am talking about.
\n\nI know time flies like an arrow. Reviewers don\'t like to dig for information, they don\'t like it when they need to summarize things themselves. Plus, when letting them do the work there is a risk that they don\'t focus on the right thing -- because yes, they come with their own set of glasses, with their domain of expertise that do not necessarily fit ours a 100% percent ... and well, OpenCare is quite a unique "assemblage" of people, isn\'t it?
', u'post_id': 5485, u'date': u'2016-04-07 05:03:09'}, {u'user_id': 4, u'title': u"Not sure \u2013 but here's an idea", u'comment_id': 25553, u'content': u'The deliverable is the platform itself, not a report about the platform.\xa0
\n\nHere\'s a suggestion: this very wiki could serve as the documentation to that\xa0deliverable. We clearly need it, so time spent on it is not wasted;\xa0and it tells users and the team how to navigate the OC community space. So maybe stick a Horizon 2020 logo into it; add a couple of screenshots (Nadia\'s slides, I guess), and send the EC, I don\'t know, a good-looking\xa0PDF file containing the link to the wiki?\xa0
\n\n@LuceChiodelliUB, does this work?
', u'post_id': 5485, u'date': u'2016-04-06 20:39:32'}, {u'user_id': 8, u'title': u'Necessary?', u'comment_id': 25457, u'content': u'@Alberto is this really necessary?
', u'post_id': 5485, u'date': u'2016-04-06 13:52:18'}, {u'user_id': 8, u'title': u'yes busy. ', u'comment_id': 25278, u'content': u'sorry. Back at end of week.
', u'post_id': 5485, u'date': u'2016-04-06 13:48:24'}, {u'user_id': 3074, u'title': u'Any news ?', u'comment_id': 24664, u'content': u'Hi Nadia,\xa0
\n\nAny news concerning the platform presentation ?
\n\nI know you\'ve been busy those days - if you need more time, just let me know
Great, thanks !
\n\nJust let me know when you are ready.
and we can put in the stuff we need there. Will try to get done by monday.
', u'post_id': 5485, u'date': u'2016-03-31 10:41:39'}, {u'user_id': 3074, u'title': u'Presentation', u'comment_id': 15606, u'content': u"We are late according to the EC, since the platform\xa0was planned in the Annex 1 of the GA to be fully operational by the end of February and we should have submitted information by that time.
\n\nI think the delay\xa0may be acceptable by the EC, since we can explain in our reports\xa0that the platform was mainly ready in due time,\xa0that edgeryders introduced it during\xa0the kick-off, with extra adjustments related to users' comments/experiences being carried out in March.
\n\nUnfortunately, I don't have any specific template nor guidelines\xa0about the way we should present the plateform,\xa0the content is free.
\n\nWe could prepare some short presentation (1 to 2 pages) using these themes:\xa0structure, motives, scientfic outcomes.
\n\nIt could then\xa0relate to the Description of Action and could be used again for public dissemination (maybe?).
", u'post_id': 5485, u'date': u'2016-03-31 10:27:48'}, {u'user_id': 8, u'title': u'Why late?', u'comment_id': 11471, u'content': u'The online space is live: http://opencare.cc\xa0what other work you are seeing being done is tweaks. Unless I am completely missing something?
\n\nPresentation of the platform: Do you have a template or questions we need to answer more specifically? It will not take long to do this and certainly before April 15 should not be a problem.
', u'post_id': 5485, u'date': u'2016-03-31 09:41:38'}, {u'user_id': 3074, u'title': u'April 15th - another deadline coming', u'comment_id': 8795, u'content': u'Hi everyone,\xa0
\n\nWe have another deadline (upcoming deliverable) :
\n\nWP2, Deliverable 2.1:\xa0Deployed, tested OpenCare online space on the production server
\n\nWhat we need to submit :\xa0presentation of the platform (structure, motives, scientfic outcomes)\xa0+\xa0links to the Op3nCare workspaces
\n\nWhen:\xa0by April 15th (if possible). We are already late - just let me know if this date\xa0sounds realistic or not.\xa0
', u'post_id': 5485, u'date': u'2016-03-31 09:31:33'}, {u'user_id': 3, u'title': u'What is your entourage like?', u'comment_id': 9505, u'content': u'Oh, this is familiar. I\'ve read so many stories on Edgeryders where young people ask this very same questions, myself included. \xa0Then what helped me was\xa0spending time with others and realising that we\'re all in the same boat and this is not a personal dillemma, it\'s a collective one. Finding each other really gives you a sense of support, somehow it helped my mind get over the\xa0fact that there is a problem. Then things would only get easier in time, because\xa0you surround yourself with people who are like you - not only that they feel the same (most everyone does!) but that they talk about it in the same uncompromising way. What is your entourage like?
\n\nHave you read @Dougald\'s piece?\xa0You\'ll love it.
\n\nOh an @Katja_Feldmeier, you should really talk to @NeleG, she touches on some similar questions in her post!
', u'post_id': 655, u'date': u'2016-04-17 10:25:19'}, {u'user_id': 3236, u'title': u'Thanks! @Noemi', u'comment_id': 11202, u'content': u'Thanks Noemi! I will look into it!!!
', u'post_id': 659, u'date': u'2016-04-10 20:15:42'}, {u'user_id': 3, u'title': u'A recommended reading', u'comment_id': 7992, u'content': u'Hi @Neolie, tough question! A\xa0case from Nepal where we did some work last year might help: change makers\xa0in that space were all motivated by the need to re-build their communities and help each other just\xa0after the earthquake, but\xa0from our team on the ground we learned\xa0that it in fact doesn\'t last long enough to make people keep on working to care for the greater picture. Intrinsic motivation seems to fail there, especially when the work is hard,\xa0unthankful, unpaid and mostly it doesn\'t solve people\'s\xa0personal needs - especially if those people are at Maslow\'s rock bottom.
\n\nThere are more insights\xa0from working in Nepal\xa0which might be of help to you. Here it is:\xa0Earthquakes create movements - but can we?
', u'post_id': 659, u'date': u'2016-04-10 16:15:50'}, {u'user_id': 3, u'title': u"I don't know", u'comment_id': 24916, u'content': u"I was wondering too. The reason why comments are now disabled in the Meetups is to focus all conversations there on stories (Challenges page) with all the pages read-only for easy navigation by first time users..
\n\nIdeally we post documentation after the events in our research group.\xa0
\n\nThis is still open for ideas, there's no best solution, what do you think?
", u'post_id': 5518, u'date': u'2016-04-10 16:37:40'}, {u'user_id': 1003, u'title': u'Meetups issue', u'comment_id': 23762, u'content': u'Hi,\xa0
\n\nis it possible to allow comments to Meetups?
\n\nHi think that it\'s the right place to post question or comments about the Meetups!\xa0
\n\nWhat do you think?\xa0
\n\n', u'post_id': 5518, u'date': u'2016-04-09 13:39:05'}, {u'user_id': 1003, u'title': u'For the past events', u'comment_id': 20197, u'content': u'Hi @noemi,\xa0
\n\ndo you think we need to create Meetups post also for past events?\xa0
', u'post_id': 5518, u'date': u'2016-04-09 13:13:03'}, {u'user_id': 3, u'title': u'How to create events in the community space', u'comment_id': 14782, u'content': u'Hi @Cristina_Martellosio - because this is part of community outreach activities I recommend posting it in\xa0Meetups\xa0on the\xa0community site.
\n\nFor reference, maybe the Guide we set up will help\xa0you in the use of the online environment
', u'post_id': 5518, u'date': u'2016-04-09 11:55:07'}, {u'user_id': 3006, u'title': u'Undisclosed content ', u'comment_id': 7463, u'content': u'Undisclosed content', u'post_id': 5518, u'date': u'2016-04-08 08:03:05'}, {u'user_id': 3, u'title': u'Look forward to learn more', u'comment_id': 7942, u'content': u'Hi @simon.messmer, thanks for sharing thoughts from your process. How\'s it coming along? Are you trying to design a project, or a product, or..?
\n\nGood luck with your course!
', u'post_id': 660, u'date': u'2016-04-10 15:06:14'}, {u'user_id': 3, u'title': u'The grey areas', u'comment_id': 14454, u'content': u'Thanks @Susa. Between caring and being careless there are many shades I think.. i for example can.t remember when was the last time\xa0I\xa0asked for \xa0help. Or offered it when someone needed it badly. It.s a function of just what you say: isolation, feeling overwhelmed and especially embarassed. Subjecting oneself to embarrassment is not something today.s societies encourage.
', u'post_id': 650, u'date': u'2016-04-07 21:22:48'}, {u'user_id': 3243, u'title': u'Undisclosed content ', u'comment_id': 9647, u'content': u'Undisclosed content', u'post_id': 650, u'date': u'2016-04-04 22:07:49'}, {u'user_id': 4, u'title': u'It goes back to communities', u'comment_id': 6719, u'content': u'Great post
It seems to me that the experiences you describe are all community-based. It\'s always people, it\'s always peer-to-peer. People give each other acceptance,\xa0encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make \u2013 if only because the people in\xa0these experiences have\xa0two\xa0ways to get acceptance and validation, one through material achievement and one through the community.\xa0
\n\nSo, probably, this is the best path to making all this become "somethings serious": invest on developing as many ways as possible for people to regenerate meaning and validation for each other.\xa0
', u'post_id': 493, u'date': u'2016-04-06 21:48:48'}, {u'user_id': 3, u'title': u'Timeless piece of writing', u'comment_id': 14419, u'content': u'This is informing so many directions\xa0in which Edgeryders have been looking and approaches that we\'ve\xa0supported\xa0over the past years.
\n\nPaging @Thom_Stewart: what I mentioned to you and David Boland\xa0the other day about deep thinking behind the idea of moving and working in a secluded place. With your own Pilgrim project in Galway perhaps you will be able to get to a deep narrative that makes it URGENT for it to happen.. because it would solve problems for whole collectivities.\xa0
', u'post_id': 493, u'date': u'2016-04-07 20:04:25'}, {u'user_id': 13, u'title': u'Undisclosed content ', u'comment_id': 8779, u'content': u'Undisclosed content', u'post_id': 493, u'date': u'2013-01-30 08:22:00'}, {u'user_id': 4, u'title': u'a friendly anarchic reply', u'comment_id': 18389, u'content': u'Petros, this is really a friendly anarchic reply! I commend you, sir. And yet, I disagree. If you spent three years getting FreeLab off the ground, you are NOT going to be happy if you come under pressure to move it somewhere else. Not everything is costlessly mobile\u2026
I\u2019d like to have a go at your question 4. The immediate danger seems to me that of an ever-deepening disconnect between insiders and outsiders, people that live according to the job paradigm and people that do not. It is easy to imagine public budget officials with an \u201causterity or die\u201d mandate do the math: let people like Petros at Freelab do their thing! This way, they won\u2019t come to us asking for welfare services, and it\u2019s not like they are ever going to pay much taxes anyway. But then, of course, there is no reason for any of the two groups to be loyal versus the other one. Given that two mutually unloyal tribes occupy the same physical space, things could get ugly.
\n\nAm I being too paranoid?
', u'post_id': 493, u'date': u'2013-01-30 12:59:00'}, {u'user_id': 13, u'title': u'Undisclosed content ', u'comment_id': 17595, u'content': u'Undisclosed content', u'post_id': 493, u'date': u'2013-01-30 14:26:00'}, {u'user_id': 147, u'title': u'Great to see you\u2019re here :)', u'comment_id': 20760, u'content': u'Hi Dougald,
\n\nGreat to see you\u2019re here
First of all I feel compelled to start with your last sentence and the reference to \u2018the Workhouse of the 21st century\u2019. My home town has one of the few and the best preserved workhouse of the country. Recently there has been a bid the renovate and repurpose the space as a diaspora and geneological centre. I freely consult with the consultant on this project, a tipperary councillor named Brian Rafferty. I approached the team originally from the perspective that the heritage and true history of the situation would have to be honored if the project was to be a success and that in certain ways it must become the antidote to the perception of hardship that most people percieve it as being (and which, in all honesty, is an accurate perception of the elusive reality of that history).
\n\nThe point that was important for me to make was that the workhouses were publically announced as the first form of organized social welfare in the country. That they served a community purpose and that in the remaking of this space there should be a strong element of that social aspect. I will not get nto the injustices in Irish history here, thats not my aim at all, and yet that is not to say that I am not fully aware of the situation as it was in reality.
\n\nI suggested to the team a number of plausable possibilities. One was that, given the proximity of the workhouse to one of the poorest housing estates in the town, that there could be a Montessori school that operates according to the social enterprise of a specified successful Dublin company who are part of the SETF (Social Enterprise Task Force) in Ireland. I also suggested, having picked spuds for local organic farmers back in the day, and having heard how they interact with the bigwigs of Tescos and SuperValue, that a local Community supported market could operate in the courtyard; that the Irish should follow the Greek Potatoe Revolution. As chance would have it
\n\nI read yesterday on my friend Lisa\u2019s facebook that she bought a bag of organic potatoes at my formeer employers organic shop for \u20ac2 less than the supervalue equivalent. My comment in reply was \u201cCommunity supported markets, local produce, undercut Tesco, nuff said!\u201d
\n\nIn addition to this the idea has been raised to me that a forest would be good to balance the atmosphere in the surrounding area. Some 3000 bodies (probably more) are buried in the fields aling the rear and side of the building. A ceremony, a tree planting, and a forest made in the fields available to the rear is an event that can give a whole community, indeed a nation, a sense of meaning, and can serve an honorary and calming purpose and service to its site and situation.
\n\nI have spoken with Slow Food Youth Ireland and to other members of the Cloughjordan Ecovillage (where Vinay lives quite a bit \u2013 hi Vinay) aswell as to members of a volunteer/selfemployment company called Local-Switch about their possible interaction with any potential project that could come of this also. Naturally, Edgeryders came up, and Brian was vaguely interested but
\n\nI\u2019m not sure that he understands the potential of the situation. He agreed that the vision is there, but claimed that there was a lack of focus\u2026that I could not \u201cbe all things to all men\u201d.
\n\nThe old generation of project manager are still in linear process and thinking hierarchically in too sharp a focus. Given your examples above concerning participation versus payed work I can see how the reallocation of resources in a distributed manner can fuel a distributed process whereby each of the participating entities can work together to achieve the best result. In the local setting you have to work with whats actually there. And so figuring that out is paramount (thats my answer to question 1 *ushaiddi/netention).
\n\nOnce we know whats there we need some kind of intermediary, like an Unmonastery who can go in and actually apply the medium for that primary issue and bring the people concerned to the same table with some notion of a potential reality, or a series of potential realities for them to work toward. It appears that the beuraucrats cannot think like this, they need to, at the very least, see its potential and deregulate and/or reregulate as necessary.
\n\nWhen you ask how far along this is already I would say that it is very far along, and that through digital loops such as Edgeryders and the various thinker and tinkerer networks emerging online there will soon be an emergent software to cater to the needs of these communities to map assets and resources in ways that will far accelerate certain modes of production, namely socio-cultural production within circular economies where products become services and work becomes life (again)
\n\nGiven Alberto\u2019s concern I would like to offer that yes, there are two distinguishable interest groups emerging\u2026and yet it is in the interest of both to actually survive. Once thats assured, at least, there is still the concern of surviving without persisting in some crisis nightmare where even the highest amongst the \u2018have\u2019s\u2019 are worriedly watching. For the neccesary balance to occur the system has to be let find its own level, a level currently beyond the balancing power of the present socio-productive organization. Ideally, it can be recognized that different is not adverse, and that new is not to be feared, that just because its different doesn\u2019t mean you won\u2019t enjoy it or that you may not actually come to learn and grow of the experience. People forget the passion that got them to their \u2018comfort\u2019. We still need infrastructure, power, sustenance, education, culture, health services etc\u2026 Same-same\u2026 But different.
\n\nYou ask what are the dangers? I won\u2019t direct my attention there. Whats the use when there\u2019s so much potential to work with in the space of life between? People get aggressive over contradictive ideology, but when it comes to social situations and the proof of the collective pudding the lesson that history teaches us is that, so far at least, things have been getting steadily better for people. If we can move with the times and with the \u2018decisive technology\u2019, then we can shed our preoccupation with the abstract personal and with the symbolic and move into a deeperly lived, and more fully conscious, Life.
\n\nPersonally I believe that the route leads through culture and is a move, with the help of the head, to and through the heart and hands. I\u2019m working on a little something north of Berlin in May that will hopefully help me understand (and show a whole bunch of others at the same time) how different cultural groups can come together in a mutually supportive space to exchange values, and value, and crosspolinate to create a new space that is equally educational, packed with arts and culture, and productive of socially changent ripples. More about that later\u2026I think its a very good example of what you ask for in your third question.
\n\nThanks for this Dougald, its a fine contribution. See you on the round.
', u'post_id': 493, u'date': u'2013-01-30 17:50:00'}, {u'user_id': 3559, u'title': u'Storify', u'comment_id': 24129, u'content': u'Here is my storify of comments leading up to, and devolving from this link being sent to me.
\n\nhttp://storify.com/exiledsurfer/thoughts-on-regenerating-meaning
', u'post_id': 493, u'date': u'2013-02-04 13:35:00'}, {u'user_id': 13, u'title': u'Undisclosed content ', u'comment_id': 18703, u'content': u'Undisclosed content', u'post_id': 493, u'date': u'2013-02-06 08:30:00'}, {u'user_id': 348, u'title': u'I was speaking to a Spanish friend about ', u'comment_id': 26170, u'content': u'I was speaking to a Spanish friend about this article. He was saying that even if \u201ceconomic growth\u201d returns to Spain, it will only work for those people who were encouraged during the boom to climb as far as they can on the higher education ladder to get \u201cgraduate jobs\u201d. In fact, those who could afford to do so have kept climbing during the crisis \u2013 using Master/Phds as \u201cwaiting rooms\u201d while they were unemployed, and using their parent\u2019s homes & support as \u201cwaiting rooms\u201d to avoid paying a premium on the crisis (i.e. high interest loans, flat evictions, etc). They\u2019ve accumulated social & financial capital that provides a cushion. Those, however who were encouraged to leave school and go straight into the boom industries like construction, now have no industry or education to fall back onto and for the most part, given their parents were also employed in boom industries, they have no financial / support cushion either.
\n\nWhat struck both of us was the irony of the situation, that people talk about the need to re-focus on the real economy (\u201cmaking stuff\u201d) to avoid a future boom & bust. Yet those with the skills to \u201cmake & build stuff\u201d are not only at a disadvantage because their industries have crashed, but because they haven\u2019t accumulated enough educational capital to compete even for jobs that haven\u2019t required this (most barman in Barcelona are graduates).
\n\nThe Center for New Work, West Norwood Feast & Access Space are all examples of mobilising skills which involve \u201cmaking stuff\u201d so perhaps for this to coalesce into something serious is to create these spaces in communities which have been dependent on manual industries which have since died and find a way of supporting not just young people to develop & resource these spaces, but their families too? (Some areas like in ex-mining villages have kept a community self-resourcing approach as a result of young people & families working together, but many areas don\u2019t have this)
', u'post_id': 493, u'date': u'2013-02-06 10:12:00'}, {u'user_id': 13, u'title': u'Undisclosed content ', u'comment_id': 27006, u'content': u'Undisclosed content', u'post_id': 493, u'date': u'2013-02-06 19:14:00'}, {u'user_id': 1487, u'title': u'Undisclosed content ', u'comment_id': 27912, u'content': u'Undisclosed content', u'post_id': 493, u'date': u'2014-01-24 12:02:37'}, {u'user_id': 2201, u'title': u'Love it!', u'comment_id': 14141, u'content': u'Some case studies showcasing the benefits of shared living.
', u'post_id': 648, u'date': u'2016-04-07 05:50:02'}, {u'user_id': 4, u'title': u'Not in this case', u'comment_id': 10701, u'content': u'Direct income support is not part of the package in our group \u2013 at least not at this stage. We do help each other financially, but this is mostly\xa0a consequence of the economies of scale that exist in family life. The other part is a willingness to cut each other slack; this all started with us accepting to sub-rent to recent migrants, who did not have jobs yet. We trusted them to make it happen, and they did. Later, when we grew from four to six, same thing again: one of the two new people did not have a job, but we took them in all the same.\xa0
\n\nBut in the long run, the deal is that you have to pull your weight. Maybe\xa0in the future we will have become so attached that we will change the deal. Who knows? Certainly this setup gives us a couple of shots before we have to give up completely. For example, we could sub-rent the extra room, and take the additional income from everyone\'s rent. Maybe the reduced privacy would be a sacrifice worth making to keep each other close, already now. Depends who you ask, I guess
Hi @Alberto, nice to read you again on this topic.
\n\nSo: together when you want to be, but apart when you want to be apart.
\n\nIt seems like your group has found just the right balance between couple intimacy and social sharing of the space, which is something that would scare many of us grownups. There is something about growing mature that makes one more and more into their own ways, and less willing to take on \'adventurous\' lifestyles. Maybe it\'s not obvious now how that\xa0pays off tenfold in the long term (i.e. family surrogates).\xa0
\n\nDo you think this setup can work if not all of you were middle class (as precarious or as unstable as middle class can be)?\xa0If someone joins but they soon fall off because of too low\xa0earnings, will the rest be able to catch them?
', u'post_id': 648, u'date': u'2016-04-01 09:18:44'}, {u'user_id': 4, u'title': u'DIYing the family?', u'comment_id': 6682, u'content': u'Hello @M\xf8rbeck, good to meet you.\xa0
\n\nI am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus.
\n\nThe traditional way to do this was this: you would leave your parents\' house, marry,\xa0settle down with your spouse and have children. This produced a "one size fits all" world, with\xa0most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are)\xa0allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized.\xa0Is this broadly correct?
\n\nBecause if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!\xa0
\n\nhttps://edgeryders.eu/en/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups
', u'post_id': 656, u'date': u'2016-04-06 20:54:24'}, {u'user_id': 4, u'title': u'Welcome, too', u'comment_id': 23395, u'content': u'
@Noemi, @Nadia, should we assign this post to the community space group as well?\xa0
', u'post_id': 5524, u'date': u'2016-04-06 20:41:06'}, {u'user_id': 3069, u'title': u':)', u'comment_id': 21681, u'content': u'Nice meeting you "virtually" as well, @Noemi.\xa0 See you in the next call
Hi @Moushira, lovely to meet you virtually. I\'m noemi, doing part of the community mmanagement online in open care. I\'m saying part because I see you are also attached to somehow being close to our growing community, like many of us involved.\xa0
\n\nHope to see you on Monday at our regular online hangouts 16:30 cet?\xa0https://edgeryders.eu/en/op3ncare/op3n-meetups
', u'post_id': 5524, u'date': u'2016-04-06 20:10:25'}, {u'user_id': 2569, u'title': u'Welcome', u'comment_id': 13986, u'content': u'Thanks for introducing yourself. I look forward to hearing more about your project and seeing what WeMake!
\n\nAlex
', u'post_id': 5524, u'date': u'2016-04-06 19:52:53'}, {u'user_id': 3069, u'title': u'Thanks!', u'comment_id': 10652, u'content': u'Lets see how we can grow a happy OpenCare community
Hi Moushira,\xa0
\n\nWelcome to the team ! Hope we\'ll get to know you\xa0soon\xa0
Luce
', u'post_id': 5524, u'date': u'2016-04-06 15:06:40'}, {u'user_id': 3, u'title': u'Looking forward to read more.', u'comment_id': 10611, u'content': u'Thanks for your thoughts @Tomma and for keeping the rest of us not in Berlin up to date.
\n\nMy name is Noemi, and myself learning to live daily with a smiling face. Not very easy, but I enjoy being in my home environment - and the feeling of safety which it gives. Here is my story, looking forward to read you. By the way you can Edit your post anytime should you want to add more info about yourself. Cheers!
', u'post_id': 651, u'date': u'2016-04-06 14:31:40'}, {u'user_id': 3, u'title': u'What do you currently do?', u'comment_id': 10561, u'content': u'Hi @Cindy, how is Berlin treating you, did you find inspiration in ways in which the community welcomed you?\xa0Back in the days Berlin used to be one of the most interesting, rich-in-diversity\xa0spaces to be in. Actually even now Edgeryders has a strong community base there, if you\'re interested to meet up let me know. I bet you met Susa and Nadia already, so that should give you a hint.
\n\nI look forward to visiting again, art festivals there are a favourite of mine.
', u'post_id': 495, u'date': u'2016-04-06 14:14:24'}, {u'user_id': 3, u'title': u'Anyone to contact for sharing a story?', u'comment_id': 10160, u'content': u'Hi @Cristina_Martellosio, looking at the Challenges active now in Open Care to discover inspiring stories I wonder if there are people/\xa0cases that you learned about\xa0during the Milan events (this one and others)? Maybe someone who was especially interested in joining Open Care\xa0could be invited here or interviewed? If it\'s in Italian rather than English, it\'s also fine.
\n\nI\'m thinking it would be helpful to get a sense of how people you engage are responding and what we can\xa0offer as a community.
', u'post_id': 5465, u'date': u'2016-04-05 18:22:35'}, {u'user_id': 3, u'title': u'Failure can be a path to activism, nicely said.', u'comment_id': 9977, u'content': u'Nice to meet you @JanStassen!
\n\nI don\'t speak German so I used google translate to understand your post\xa0(English translation here). If I got it well, you have said wise words: we don\'t need to reach the care utopia with normalized approaches, but with trial and error. Are simulator workshops something to look into with more detail then? Any other tells or resources you know, do tell.\xa0that would be useful to OpenCare where we are supposed to look into promising ideas and prototype them - but prototyping in the "lab" so to speak could mean a due dilligence fail test (?) hm.
', u'post_id': 649, u'date': u'2016-04-05 11:21:00'}, {u'user_id': 3006, u'title': u'Undisclosed content ', u'comment_id': 9007, u'content': u'Undisclosed content', u'post_id': 5490, u'date': u'2016-04-01 11:43:08'}, {u'user_id': 3, u'title': u'Reaching out to medical practitioners', u'comment_id': 15411, u'content': u'In order for briefs to be efficient in terms of engaging people to relate deeply and submit stories, they need to be rock solid in providing background information about the topic - short and well packaged, but\xa0to the point and credible. It is that background info that helps us contextualize issues and ask very good\xa0questions.\xa0It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.
\n\nAny way you guys can share\xa0the\xa0drafts linked above\xa0with your networks asking people what is it that they find most important to ask when it comes to coming up with effective, community\xa0solutions?
\n\nAlso, let me know if you know\xa0professionals that are also\xa0good writers whom we can approach for writing\xa0stories in response to the themes - personal experiences and takes on the issue (example\xa0of a contribution)
', u'post_id': 5479, u'date': u'2016-03-30 14:42:49'}, {u'user_id': 8, u'title': u'Agreed, thanks. First up- dementia', u'comment_id': 13542, u'content': u'Ok,
\n\nPeople on the move makes a lot of sense. It includes people who move for any number of reasons. But we then need to give people some examples of what might fall under that, e.g. People fleeing war, People moving abroad to study, working mostly online and living in different parts of the world etc.
\n\nI\'ll prepare the\xa0 docs for the other two, for now, have a look and contribute to shaping the brief to would be participants for the dementia related initiatives in this shared document?
\n\nAnother\xa0 helpful contribution would be to share your own reflections on this after the workshop we both participated in during lote5. I\'m doing the same further below in the same document
', u'post_id': 5479, u'date': u'2016-03-21 18:29:34'}, {u'user_id': 4, u'title': u'Mostly agree', u'comment_id': 10741, u'content': u'Opening domains allows us to capture potentially more great examples. For example, there is probably nothing to be gained by restricting to hackers the suicide prevention story (we are looking into it as part of a different piece of work we are doing in Galway: apparently, suicide is endemic in the West of Ireland). If we just look into suicide prevention, we can still fetch all of the stories coming from the hacker community.\xa0
\n\nOn the other hand, suicide prevention is more suited to community-driven solution than treating mental distress. Why? Because it\'s about someone being there at the right time, pulling the suicidal person away from the brink. This presents interestingly specific challenges.\xa0In this case we might lose some focus if we move over to "mental distress".\xa0
', u'post_id': 5479, u'date': u'2016-03-21 18:29:00'}, {u'user_id': 1442, u'title': u'comments on two domains', u'comment_id': 6774, u'content': u'Hi Nadia,
\n\nWe agree with what you propose, we have a couple of comments regarding two of the domains:
\n\nWhy focus only on refugees and not on migrants in general? Or if we don\u2019t want to call them migrants and refugees, let\u2019s call them something like people in movement without papers: Sans-Papier
\n\nThis target is a bit too tight on hackers and becomes then necessary define what is a hacker and we think we could get stuck in this conversation (ie. why only hackers and \xa0not makers? what are really hackers?)\xa0.
\n\nWhy don\u2019t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?
\n\nbest
\n\nZoe
', u'post_id': 5479, u'date': u'2016-03-21 17:37:03'}, {u'user_id': 8, u'title': u'On the road', u'comment_id': 13880, u'content': u'Peter thanks for taking the time to post your nots above. Would like to really read and reply to your questions, share reflections etc but am on the road till Sunday. Will post in soon
', u'post_id': 5463, u'date': u'2016-03-17 14:51:28'}, {u'user_id': 1680, u'title': u'When the left gets funded', u'comment_id': 13703, u'content': u'
Just caught this @phm - don\'t know if @ pinging was working correctly when you posted?
\n\nI\'ve been considering emfcamp.\xa0 I\'m part of a mobile hackspace/workshop project and back in January made the proposal to do something with our workshop at EMF, but nobody else appeared interested.\xa0
\n\nI\'ve been thinking about doing some kind of fantastical area at an event for a while, something inspired by madmax, solarpunk and\xa0https://archive.org/details/NomadicEcoVillages - not quite sure how/if that would fit in with OpenCare, although I guess it could?\xa0
\n\npinging @Billy_Smith in the hope that the pings are working again
EMF is August 5th - 7th 2016,\xa0Guildford.\xa0https://www.emfcamp.org/
\n\nWe could do something there. @billy-smith @darren
', u'post_id': 5463, u'date': u'2016-03-16 14:39:58'}, {u'user_id': 1680, u'title': u'Hangout ideas', u'comment_id': 10261, u'content': u"Hangout was good. Started in 'appear.in' but it was really laggy so we moved to Google hangouts.
\n\nMy feeling was that I'd be more likely to put effort into the open care thing if I believed it would come up with concrete results (e.g. helping people / reducing suffering) , if it was just making a big document that got read and largely ignored, I'd feel it was a waste of time, and I think everyone will share this feeling.
\n\nI think Nadia agreed, and said that we could/should try to get some concrete change from this project (as well as fulfilling the minimum requirements of providing the research / ideas / documentation.)
\n\nFor the research part, I thought the only way to actually know what is going on would be to go to places where health care is needed, and talk to people first hand. Get a feel for their situation. (Rather that trusting info sources from others). So I think we could get people to visit anywhere that seems like it might lack good health care and talk to people in need, and the people giving the care. e.g. Refugee camps, impoverished inner city areas where there are too many people and not enough doctors / hospitals. Rural areas where it's hard for people to get health care. Go to places, talk to people get first hand accounts, do surveys and get numbers.
\n\nFor stats / raw data , I'd want to know:
\n\nHow many doctors/clinics/hospitals there are in the area.
How the health care is funded: (is it governments paying with taxes? Charities? The communities themselves dealing with the problems, without outside help?)
How do people get to the health care when they need it? distance? cost?
How long do they have to wait? satisfaction with the care they receive?
How many people need care and are not getting it?
etc.
\n\nSomeone (forgot name) asked an important question: Does our client (client?) care about the situation in America, or because it's EU money do they not care about far away places, with maybe completely different situations / cultures?
\n\nFor the UK, an important question i would like answered is: 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods / efficiency be improved? If so, how? How could they improve? Better software / organisation? a change in culture?
\n\n(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)
\n\nTo me, the most exciting idea would be to get hackers involved in health care. Healing people is (often / can be) easy when you apply creativity and radical tech and hacker problem solving mentality.
\n\nI think an important question raised was 'is the legal side preventing this from happening more? Or will it get in our way?'
\n\nMaybe hackers are put off operating on people cos they might get sued if it goes wrong? Or 'pretending' to be a dentist is illegal and only people with official training should be allowed to mess with teeth?
\n\n(Issues with stuff like law getting in the way of common sense hacking with pacemakers cos of stupid patent laws / lack of open software ?)
\n\nNadia said we can find people with expert legal knowledge, and see what the situation is.
\n\n(Common wisdom is that dentistry is very difficult and takes 7 years training, or whatever. I can see why this makes sense. It is very difficult and can get very bad results if it goes wrong, so obviously 'amateurs' should not hack teeth.
\n\nHowever, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing / crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )
\n\nAlso mentioned: hackers making rucksacks for refugees.
\n\nWhat about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.
\n\nThis is not directly health care, but you can argue prevention is better than needing to cure. E.g. if people are living on the streets or extreme poverty where they can't keep warm and dry, and wash, of course they are more like to get sick and have many health problems.
\n\nSo the thing that excites me the most is getting hackers involved in radical change like this.
\n\nNadia said that actually getting positive change was something we could and should be doing (even though technically we don't have to DO anything, just provide research / ideas).
\n\nSo she suggested that I could help organise an event in London, where we get hackers together, and see what we can do.
\n\nSo I think a big event with lots of hackers would be good.
\n\nNadia mentioned planing to do something in London, and in June. Not sure why London (just cos I was keen to help, and i know London?) or were you thinking of doing something in London anyway? and why June? dunno. but anyway, that seems feasible.
\n\nThe minimum i would expect from this, is just lots of brainstorming / ideas by smart hackers that we can document and add to the report.
\n\nThe best case, would be if something more long term came out of it, and they ended up improving health care in London.
\n\nLondon hackspace would be the logical place to host it (and I know the members and trustees very well).
\n\nSo if you guys think that sounds like it's worth doing, I will contact them and see what they feel and if there is any support / excitement about the idea. They would probably allow the space to be used for free, but if we wanted a lot of people and for more than one day, it could be a nice gesture to offer to donate some money from the grant for use of the space. (it's entirely non-profit and run by members) (they did look into charity status, but decided against it)
\n\nNormally it's members only, but they will make exceptions for special events (and a lot of the people interested would be members anyway).
\n\nI know one or two members that are involved in edgeryders, so I would also contact them.
\n\nWhat do you think?
", u'post_id': 5463, u'date': u'2016-03-15 23:45:00'}, {u'user_id': 2915, u'title': u'That works', u'comment_id': 20087, u'content': u'thanks!
', u'post_id': 5491, u'date': u'2016-03-25 02:43:51'}, {u'user_id': 1442, u'title': u'Try this', u'comment_id': 14604, u'content': u'\n\n\nCopy and paste in browser
', u'post_id': 5491, u'date': u'2016-03-25 02:36:15'}, {u'user_id': 2915, u'title': u'The CERN link', u'comment_id': 7364, u'content': u'Says "denied" when I try to go there. \xa0The TED links work ok.
', u'post_id': 5491, u'date': u'2016-03-24 18:41:04'}, {u'user_id': 3202, u'title': u'Undisclosed content ', u'comment_id': 23551, u'content': u'Undisclosed content', u'post_id': 5432, u'date': u'2016-03-23 09:22:44'}, {u'user_id': 1003, u'title': u'Liscio Ambrosiano with Claudio Merli ', u'comment_id': 20873, u'content': u'Claudio will be our rockstar!!
\n\n', u'post_id': 5432, u'date': u'2016-03-10 09:04:20'}, {u'user_id': 3, u'title': u'Great promotional gif', u'comment_id': 15487, u'content': u'Loved it and added it to our visual repository in the google drive.
\n\n', u'post_id': 5432, u'date': u'2016-03-09 11:43:54'}, {u'user_id': 3202, u'title': u'Undisclosed content ', u'comment_id': 11683, u'content': u'Undisclosed content', u'post_id': 5432, u'date': u'2016-03-11 09:47:15'}, {u'user_id': 8, u'title': u"Photos or it didn't happen :))", u'comment_id': 8496, u'content': u'Kidding aside. Very curious how you are structuring this event, what communication materials you have sent to whom and then what people actually say/do during the event.
\n\nThe reason being that if we can learn from one another, then we can help others maybe do the same workshops/event where they are based....
', u'post_id': 5432, u'date': u'2016-03-09 09:28:41'}, {u'user_id': 1003, u'title': u'cool', u'comment_id': 6917, u'content': u'This is very cool, we should bring Nagler\xa0into the conversation!\xa0
\n\n', u'post_id': 5462, u'date': u'2016-03-21 20:46:43'}, {u'user_id': 1680, u'title': u'case in point', u'comment_id': 16891, u'content': u'\n', u'post_id': 5469, u'date': u'2016-03-19 01:57:30'}, {u'user_id': 1680, u'title': u'Yeah', u'comment_id': 10467, u'content': u"I'm more worried about people hacking into my computer. My computer is part of me / my brain.\xa0OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.
\n\nI don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable.
\n\nSo my point is: This IoT security panic is being blown out of proportion. It's nothing new.
\n\nSure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.
", u'post_id': 5469, u'date': u'2016-03-17 15:02:06'}, {u'user_id': 1003, u'title': u'on Facebook you can share this link', u'comment_id': 10502, u'content': u'https://www.facebook.com/wemake.cc/posts/1150451201640742
', u'post_id': 5471, u'date': u'2016-03-18 09:17:01'}, {u'user_id': 2569, u'title': u'Damn!', u'comment_id': 12695, u'content': u"Hi Nadia,
\n\nThat would be amazing, but i think i have to work tonight and tomorrow daytime\xa0which means i can't do anything. I'm waiting to hear back, in which case i might be able to come down tonight, but it's 50/50 at the moment.
\n\nI'm busy from early friday morning as i'm going to the wilds of Scotland for a week to write poetry and read EU cultural documents!
\n\nAlex
", u'post_id': 5461, u'date': u'2016-03-16 14:36:50'}, {u'user_id': 8, u'title': u'Are they in the UK?', u'comment_id': 11986, u'content': u'Hiyah Alex,
\n\nwas just writing up my notes from the call and saw this. I\'m going to be in London from tomorrow through to Sunday.
\n\n1) there\'s a dinner Im hosting (Ezio will be there as well) if you you\'d like to join us. I\'ve rented an airbnb so if you need a place to crash you\'re welcome to stay there too
\n\n2) I\'d love to meet them, with you also if you have time? I\'ve no problem getting to where they are and if you\'d like to join me that would be even better
Let me know?
\n\n<3
', u'post_id': 5461, u'date': u'2016-03-15 19:42:10'}, {u'user_id': 2569, u'title': u'it was a very good documentary', u'comment_id': 10128, u'content': u'Hi John,
\n\nI watched it when it was on TV in the UK. It was very powerful and interesting, certainly worth following up with them.
\n\nThe link to watch it through the UK BBC iPlayer service is here:\xa0http://www.bbc.co.uk/programmes/b073jh6b\xa0
\n\nI think it\'s only available to UK IP addresses, but i\'m sure that won\'t hold you back, a simple VPN will get past that.
\n\nYou can also follow the link and buy it as a video download for about $2/2Euro if you\'re feeling generous.
\n\nIt s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it\'s even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.
\n\nIf you wanted to organise a meeting or discussion with them i\'d be happy to act as an intermediary, or scribe so we could share with the rest of the community.
\n\nAlex
', u'post_id': 5461, u'date': u'2016-03-15 18:06:30'}, {u'user_id': 3074, u'title': u'Thanks @trythis ! ', u'comment_id': 11877, u'content': u'Thanks @trythis !
', u'post_id': 5460, u'date': u'2016-03-15 08:56:53'}, {u'user_id': 2551, u'title': u'@LuceChiodelliUB this is what I got if I ', u'comment_id': 9901, u'content': u'@LuceChiodelliUB this is what I got if I just brutally copy-paste (and add timeline as image). If you people want to work with it - it is all yours.
', u'post_id': 5460, u'date': u'2016-03-15 08:06:23'}, {u'user_id': 3, u'title': u"Me, I'm a content freak", u'comment_id': 33416, u'content': u'I would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care\xa0priorities in a whole different light. Or the layers you mention ("opinion" "contradict" etc). But if you have an ethnographer analysing the more in-depth\xa0conversation, isn\'t that\xa0covered?\xa0@jimmytidey is involved in\xa0mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes?\xa0http://localnets.org/
', u'post_id': 5440, u'date': u'2016-03-11 10:51:22'}, {u'user_id': 2464, u'title': u'When sentiment analysis hits the fan', u'comment_id': 25117, u'content': u'@Alberto @MassimoMercuri\xa0[Je n\'ai pas r\xe9sist\xe9 \xe0 faire ce mauvais jeu de mots ...]
\n\nMy guess is you don\'t see value in sentiment analysis because up to now you have been able to track almots every and each of the users, and probably every and each post/comment on edgeryders.eu -- this is no surpirse, it\'s your job as a community manager!
\n\nWhat if the community grows, what if the volume of excange makes it so that you cannot afford to track each individual or post?
\n\nMaybe "sentiment" is not the good way of thinking about how to use this technology. And maybe, it\'s true, sentiment coloring is not that useful.
\n\nLet\'s give it a second chance.
\n\nI am no fan of sentiment analysis.\xa0
\n\nI tried with several words ("edgeryders", "edgeryders OR opencare", "stewardship", but I can\'t seem to learn anything of substance.\xa0
\n\nHope that was not too disappointing, @melancon...
', u'post_id': 5440, u'date': u'2016-03-10 23:46:20'}, {u'user_id': 8, u'title': u'Include a customised offer into the fellowship package?', u'comment_id': 20919, u'content': u'See discussion here? https://edgeryders.eu/en/opencare/fellowship-program-timeline-and-rewards-each-partner-can
', u'post_id': 5440, u'date': u'2016-03-10 17:26:44'}, {u'user_id': 2464, u'title': u'Be sentimental', u'comment_id': 15809, u'content': u'Open your heart.
\n\nImagine you read posts, you are trying to understand what is going on in the Op3nCare crowd, maybe looking how newcomers are doing, maybe looking for places where lively debates take (took) place.
\n\nHow does the sentiment scale used in the demo serves your search? How would you go from the sentiment map to the data you are looking for?
\n\nCome on guys, be generous, tell me all -- I need it to fuel WP5. Thanks!
', u'post_id': 5440, u'date': u'2016-03-10 16:56:33'}, {u'user_id': 4, u'title': u'What a bad miss', u'comment_id': 8996, u'content': u'Thank you so much for posting this, Darren. I am heartbroken to have lost this session. It relates to my own work on Protocol:
\n\nhttps://edgeryders.eu/en/unmonastery/protocol-01-engineering-human-to-human-interaction-for
\n\nI\'ll ask Meredith in person...
', u'post_id': 5438, u'date': u'2016-03-10 00:56:02'}, {u'user_id': 4, u'title': u'Great job!', u'comment_id': 26603, u'content': u'You guys in Milano rock. Well done! \xa0
', u'post_id': 5431, u'date': u'2016-03-09 17:50:16'}, {u'user_id': 3006, u'title': u'Undisclosed content ', u'comment_id': 24113, u'content': u'Undisclosed content', u'post_id': 5431, u'date': u'2016-03-09 16:18:31'}, {u'user_id': 3006, u'title': u'Undisclosed content ', u'comment_id': 20709, u'content': u'Undisclosed content', u'post_id': 5431, u'date': u'2016-03-09 15:04:51'}, {u'user_id': 8, u'title': u'Ok tweeted about this', u'comment_id': 15328, u'content': u'Looking forward to hearing what happened, especially how you guys introduced the project (got slides or presentation notes?) and which questions people asked!
', u'post_id': 5431, u'date': u'2016-03-09 09:06:20'}, {u'user_id': 3074, u'title': u'My bad - here is another link', u'comment_id': 13846, u'content': u'Hi @Betty Gorf !
\n\nSorry for the bad link - You can get the whole EC package of logos in JPEG format from here:\xa0http://ec.europa.eu/dgs/communication/services/visual_identity/img/standard/standard-pos-jpg-high-all.zip
\n\nSource:\xa0http://ec.europa.eu/dgs/communication/services/visual_identity/index_en.htm
', u'post_id': 5431, u'date': u'2016-03-09 14:39:44'}, {u'user_id': 3006, u'title': u'Undisclosed content ', u'comment_id': 13840, u'content': u'Undisclosed content', u'post_id': 5431, u'date': u'2016-03-09 14:30:58'}, {u'user_id': 3074, u'title': u'Great idea, thanks !\n\nI could also lend you ', u'comment_id': 13794, u'content': u'Great idea, thanks !
\n\nI could also lend you a hand with this - just let me know
I\'m preparing some template slides with standardised information about the project where people can then add their own content for their public presentations. So we all know we\'re "safe" in terms of fullfilling grant agreement requirement for comms while still enabling decentralised workflow :))
', u'post_id': 5431, u'date': u'2016-03-09 10:26:18'}, {u'user_id': 3074, u'title': u'Hi Alberto,\xa0\n\nGreat presentation !\n\nI would like to point ', u'comment_id': 13624, u'content': u'Hi Alberto,\xa0
\n\nGreat presentation !
\n\nI would like to point at\xa0just one tiny detail - Could you please\xa0add in your presentation (maybe at the end?) the following information?
\n\n-\xa0European Commission logo (available here:\xa0https://drive.google.com/open?id=0BxnwAmGNB9t9N2x0UE9ZeUx5eVE)\xa0
\n\nAll partners within the project\xa0are compelled by the European Commission\xa0to display them on every communication related to the project.
\n\nThank you !
\n\nLuce
', u'post_id': 5431, u'date': u'2016-03-09 09:30:16'}, {u'user_id': 8, u'title': u'Small correction', u'comment_id': 11354, u'content': u'Ciao Alberto,
\n\nthanks for sharing the slides. Due cose. Edgryders ha piu di 3000 members. E poi e intergenerazionale, non solo giovane
!!
', u'post_id': 5405, u'date': u'2016-03-06 19:35:30'}, {u'user_id': 4, u'title': u'Impressive! ', u'comment_id': 14804, u'content': u'Either Lorenzo has a very clutter-free brain or you took great notes. Or both. Either way, this is really insightful.\xa0
', u'post_id': 5405, u'date': u'2016-03-04 18:04:02'}, {u'user_id': 217, u'title': u'This was a surprisingly effective approach', u'comment_id': 7673, u'content': u'I had used the 3-person \'storytelling\' approach before (possibly at another LOTE?) but I really found it effective here. Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There\'s not often much chance for deep reflection. So this was a nice chance to gradually eke out insights from our collective experience, we started on a relatively basic level and then by the end we had covered a lot of ground, a sense of trust and intimacy was developed we got into some very interesting questions (and answers!)
\n\nHere are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.
\n\n', u'post_id': 5405, u'date': u'2016-03-04 14:47:00'}, {u'user_id': 3025, u'title': u'wow, all the action ... ', u'comment_id': 30298, u'content': u'Hejhej!
\n\nI\'m really impressed to see how effortlessly the notes are flowing in and how the documentation is taking shape and growing steadily. Seeing all that action on the docu team is awesome!
As always, someone has to lag behind, and that\'s going to be me, damnit! I\'m trying to ignore a flu while working double shifts to make up for my last week\'s absence because at Lote and next week\'s because of Art of Hosting Karlskrona. Will try to be back a little later in March with typed up notes and reflections on the event in general ... after jumping on another tree for a week!
\n\n', u'post_id': 5255, u'date': u'2016-03-04 10:43:53'}, {u'user_id': 3, u'title': u'Meetup documenters 18:00 today Merab room', u'comment_id': 29520, u'content': u'Hi all, it seems we have ourselves a team!\xa0
\n\nWith @Kaja we thought of quickly meeting each other and agreeing how to coordinate over the next few days.
\n\nIf you are at SmartBe for LOTE launch on Thursday, right after we will meet in Merab room, at\xa018:00 or immediately after the welcoming and before dinner. See you there!\xa0
', u'post_id': 5255, u'date': u'2016-02-25 09:43:08'}, {u'user_id': 3041, u'title': u'Undisclosed content ', u'comment_id': 28432, u'content': u'Undisclosed content', u'post_id': 5255, u'date': u'2016-02-25 08:36:45'}, {u'user_id': 3025, u'title': u'The Art of Powerful Question ', u'comment_id': 26911, u'content': u'I added it to the Wiki, but just in case there\'s no notification:
\n\nIf you\'re interested in The Art of Powerful Questions, please this way.
\n\nEnjoy!
', u'post_id': 5255, u'date': u'2016-02-20 20:36:39'}, {u'user_id': 3154, u'title': u'My contribution', u'comment_id': 23430, u'content': u'Hello all,
\n\nNice to meet you. I just joined, and would like to let you know that I am willing to document (let me say I will be a session journalist, but also seeking questions, patterns and the flow of) the workshop on "The pedagogy of development in the Global South".\xa0 I hope that doesn\'t coincide with the "Collaborative inclusion" session, as that was my main reason to attend.\xa0 But we shall see when we come to that.
\n\nLooking forward to see you on Thursday.
\n\nAnnick
\n\nPS: sorry for posting it as a comment but I have no idea how to otherwise let you know what I can contribute here.
', u'post_id': 5255, u'date': u'2016-02-18 15:17:09'}, {u'user_id': 3025, u'title': u'Yay!', u'comment_id': 23097, u'content': u'Thanks for joining the session journalists Looking forward to reading all about that session, which I probably won\'t be able to join, myself.
You\'re actively lowering my fomo - phew!
', u'post_id': 5255, u'date': u'2016-02-19 09:38:54'}, {u'user_id': 2945, u'title': u'Hackpad also figured out ', u'comment_id': 23005, u'content': u'Hackpad also figured out
', u'post_id': 5255, u'date': u'2016-02-20 13:03:53'}, {u'user_id': 2945, u'title': u'Thanks!', u'comment_id': 22574, u'content': u"Thanks Noemi, it worked! Now I still have to figure out the hackpad thingy. I'm a little confused, can you confirm me that it is going to be part of the edgeryder group?
", u'post_id': 5255, u'date': u'2016-02-20 12:53:21'}, {u'user_id': 3, u'title': u'Edit button above the menu', u'comment_id': 21676, u'content': u'Hey, hope this helps:
\n\n', u'post_id': 5255, u'date': u'2016-02-18 10:20:00'}, {u'user_id': 2945, u'title': u'HOw to add myself?', u'comment_id': 19632, u'content': u"Hi, I'd like to help document the Master of Networks session, but I can't edit above. How do I do it?
", u'post_id': 5255, u'date': u'2016-02-18 09:20:18'}, {u'user_id': 3025, u'title': u'you are the pro reg. the techy side of things ... ', u'comment_id': 18819, u'content': u'... so I think a group is perfect. I most probably meant that when writing "sub section", hehe. Still not totally getting the forum\'s structure.
\n\nOne request @Noemi: please don\'t call the new group "Harvest" ok? Rather "Documentation" or something the like.
\n\nThere is a difference, which I don\'t expect to be clear yet (because I didn\'t break it down in detail probably, and it\'s a little tough to
\n\nfind the right words right now due to time shortage), but it\'s important for me to rather point to the documentation side for now,
\n\neven though it might seem I\'m splitting hair.
In a nutshell: how to document is on track already and it seems like it\'s going to work.
\n\nHarvesting, on the other hand, is a process that is not going to happen in its full potential at LOTE (as I had to realize), due\xa0
\n\nto different reasons (number of people present at LOTE with AoH harvesting experience, process design compatibility ...).
\n\nSo what\'s going to happen are some sprinkles of harvesting. It will rather be flower picking than harvesting the entire field,\xa0
\n\nif that allegory helps. Yes, I know, I called it "harvesting" myself, in a moment of overestimating (ignoring?) possibilities.\xa0
\n\nTypical utopians trap! sigh
\n\nTherefore, I expect the amount of documentation threads to dominate - so it would be more correct to call the group accordingly.
\n\nI\'m not be able to explain this in more detail right now, sorry, even though I\'d love to. Looking forward to talking about this to you in person.
\n\nThanks!
\n\nKaja
', u'post_id': 5255, u'date': u'2016-02-19 13:13:00'}, {u'user_id': 3, u'title': u'Better than subsection of LOTE5..', u'comment_id': 18640, u'content': u'..a new group: LOTE5 Harvest. Basically when clicking there all posts/wikis/documents will be documentation only. I also assigned this wiki to that group. So we have a clean slate. Works? @Kaja.
', u'post_id': 5255, u'date': u'2016-02-19 11:27:04'}, {u'user_id': 3025, u'title': u'Link', u'comment_id': 18239, u'content': u'Okay, thanks! See you on wednesday then.
\n\nLogistics wiki: So far, the link for uploading is the LOTE5 workspace, will there be a sub-section like "/docu" or so? Otherwise, I imagine the threads will be scattered all over the forum and it\'ll be hard to find them.
\n\nPosterwise:
\n\nI\'d like to alter the wording a bit, because "enjoy" can be interpreted in the slightly cynical direction of "well, if you think that\'s a good idea, enjoy yourself!"
I didn\'t mean it that way, when I wrote it, and I\'d like to be clear and apprechiative about what people chose to do. What I meant was to encourage people to
\n\ndo what they want, so please change to "That\'s great, too!" instead of "Enjoy."
\n\nSuggestion for wording:
\n\n\n\n\n"Like to document in another way? That\'s great, too! After you\'re done, please upload your material here: LOTE5 workspace
\nLook whether a post for the session already exist there.
\nIf so, add you material to the post.
\nIf not, open one and start the documentation of that session.
\nTadaah!
\n
Tadaah probably optional, but I hope you get the idea. Intention: make process as easy and clear for everybody, also those who either weren\'t present
at introduction or couldn\'t be bothered then, but then get interested in contributing afterwards and can\'t remember what was said about the "how to".
\n\nOr am I making this more complicated than necessary? Previous lote experiece based feedback welcome!
\n\nLogistics # 2: Since you liked the posters idea ... For the overview of what is being documented and making things as easy as possible:
\n\nWould it be possible to also have a printed version of the documentation wiki excel where people add their names to the sessions?
\n\nThat would be hanging somewhere on a well visible wall and people can walk up there and add themselves spontaneously. Again, for the pen and paper crowd
\n\nwho\'re not into checking everything online all the time.
\n\nThe "worst" thing that can happen is that we have people parallely signing up online and on the paper version.
', u'post_id': 5255, u'date': u'2016-02-19 09:36:32'}, {u'user_id': 3, u'title': u'Hm', u'comment_id': 17128, u'content': u'@Kaja: I hear there are plenty of corners for people to gather spontaneously. Come next week on Wed, we\'ll be able to go and check it out and see where such a wall could be placed? I\'ve made a list of logistics still needed to be taken care of, feel free to add there no of postits +\xa0visual you showed us for documenting in analogue mode. We can print it Wed.
\n\nShare your learnings: nothing planned in particular, it\'s usually that at the end of the day it makes sense to reconvene. We don\'t have formal "curators" to round things up, but @Nadia is damn good at opening up discussions. Let\'s see what we can come up with, if you have ideas bring them on.\xa0
', u'post_id': 5255, u'date': u'2016-02-18 19:54:46'}, {u'user_id': 3025, u'title': u'on space and sharing learning', u'comment_id': 16914, u'content': u'Hey again
\n\nTwo questions (for the moment), ping @noemi:
\n\nI read that the venue is a maze It would be very good to have a big wall for the things that will be written on post-its etc., so this now is about the pen and paper side of the game ...
It would be perfect if there was enough space next to that wall so people could form - more or less spontaneous - chair circles if they feel like sharing something (or if someone like to invite, which I for example like doing, sometimes, but it can of course also be opened by anybody else). It is nice to have a space for these things. Is that something you happened to planned for? Like a retreat area or so?
\n\nIn the program it says "share your learning", at the end of the day. What did you plan to do there? I mean ... will it be hosted in any way or will people be given time to socialize and things will happen on their own? Just curious what that programm point means If you don\'t want to spoil the mystery, that\'s okay, too I like surprises.
Have a good evening, everyone!
\n\nKaja
', u'post_id': 5255, u'date': u'2016-02-17 18:09:40'}, {u'user_id': 3025, u'title': u'drowning too ...', u'comment_id': 13820, u'content': u'sigh And see, how good I am at staying away from the forum in order to get some rest? Damn!!
Wednesday at 10 sounds good for me! Just on a note that doesn\'t belong here, but if you talk to Ireinga about times anyway ...
\n\nif it\'s more practical that one dish gets cooked on Wednesday evening, I can also do that, if enough help is around.
', u'post_id': 5255, u'date': u'2016-02-20 20:35:21'}, {u'user_id': 3, u'title': u'Between 6 and 7 sounds OK', u'comment_id': 13813, u'content': u'@Kaja, thanks for the suggestion, i think it will work to gather after the opening, if we manage not to disperse too much in the general frenziness. By then we\'ll have people signed up for this as they check in.
\n\nSorry I havent answered your last email, have been drowning a bit trying to answer other stuff. @ireinga and I will be working all Wednesday and running around getting stuff ready, so maybe we can all meet at SmartBe around 10? let\'s wait for Irene to confirm..\xa0
', u'post_id': 5255, u'date': u'2016-02-20 19:48:09'}, {u'user_id': 3025, u'title': u'on time (thursday)', u'comment_id': 13793, u'content': u'Hey Noemi
\n\nregarding: "We\'ll be explaining documentation at the beginning of the event\xa0+ ask the people who volunteered here to remind others in the individual sessions (we should\xa0have a small gathering earlier on Thursday before LOTE starts and it gets crowded)."
\n\nJust for the planning of when to explain documentation (and the harvesting aspects): I will have to attend a organisational call for an Art of Hosting event between 7 and 8:30 pm on thursday,
\n\nso I won\'t be available during those 1,5 hours.
\n\nLooking at the programm, the general introduction is between 5 and 6 pm. If we gather the docu crowd right afterwards, we can well be finished with that before 7 pm. Works? Or anytime before that, of course.
\n\nAnd if day wasn\'t full enough already, of course, I cook on thursday (but hope to do it as early as possible, preferably even before the afternoon.).
UPDATED: Or we could set up a new group on Edgeryders "LOTE5 Harvest"?
\n\nI love how thorough you are. Ok so:
\n\nI like the suggestion, since I guess you\'re suggesting it, because worked at previous LOTEs, so go ahead! Why change a running system. Just some comments & questions:
\n\nSounds good, will you post every single link to the wiki then in advance, too (or is it one link for all sessions, referring to #3?)? Will there be a little time in the very beginning of the event when everyone is gathered so that you could walk people through a short introduction into Hackpad? I expect lots of people to join the documentation team kinda spontaneously on the spot, so they might appreciate a short "how to", if they never heard of Hackpad (the name alone can be a bit intimidating, as it slightly implies you gotta be techy). I\'m thinking of the pen and paper crowd here and of how to best invite people in case this is a new form of doing things for them.
Good idea for people who like the communal documenting idea. I\'d like to add that people should still be encouraged to find a good balance between trying this if they like, but not feel pushed if they prefer to do it in another way. For me, it would be very distracting to listen to the session while co-documenting with others. I would easily get lost in trying to read other people\'s contributions - and have a lot of fun doing it - but get distracted. So yes, point to the Hackpad, and leave space for alternatives, so that people can do it the way they do it best.
Who would do this "pointing out", then? Can the speakers be asked to refer to the Hackpad link / Documentation thread in the beginning? No one of us will be around at every session, so how can this work best for all?
\n\nWould it help to have a "how to document / Hackpad" poster in the room as a backup plan, so people can look up the basics there? Like this, for example:
\n\nLike co-documenting with others? Go to: https://lote5.hackpad.com/ and find the session. Group Hackpad on!
Like to document individually? Enjoy. After you\'re done, please upload this here: "link in forum to be defined where the postings about sessions will be set up" and find the session you\'d like to contribute your documentation to.
Or so ...? Don\'t know. How did you do it in the past so that it was clear where the documentation goes to? Before every session? Once at the very beginning of the event?
\n\nMore on general documentation/harvesting questions/coordination in next comment.
\n\nCheers
\n\nKaja
', u'post_id': 5255, u'date': u'2016-02-17 17:37:54'}, {u'user_id': 3, u'title': u'LOTE5 workspace on hackpad', u'comment_id': 10711, u'content': u'The collection @Alberto mentions, I set it up:\xa0https://lote5.hackpad.com/
\n\nIt is public, but in order to edit it people need to log in. Some try and ask for an invite?\xa0
\n\n@Kaja, beautiful work and very clear instructions. Let me know if I can be of more help.
', u'post_id': 5255, u'date': u'2016-02-09 09:25:22'}, {u'user_id': 4, u'title': u'Collaborative real-time note taking', u'comment_id': 6693, u'content': u'Hello @Kaja, thanks for this. I will definitely be part of the documentation effort.\xa0
\n\nI would like to suggest a way to organize the session journalism. I will definitely use it when I document \u2013 I guess I might start with John Coate\'s session. Let\'s see if you like it.\xa0
\n\nhttps://edgeryders.eu/en/lote5-doc/documentation-collaborative-inclusion-how-migrants-residents
', u'post_id': 5196, u'date': u'2016-03-03 18:11:40'}, {u'user_id': 8, u'title': u'Cool, joining us?', u'comment_id': 32979, u'content': u'If so and you need a ticket...documentation tasks for a ticket :))\xa0https://edgeryders.eu/en/lote5/documentation-harvesting-of-lote-what-why-how
', u'post_id': 5196, u'date': u'2016-02-25 16:43:47'}, {u'user_id': 3188, u'title': u'Mapping initiative', u'comment_id': 32952, u'content': u'Hi there,
\n\nI thought I would share the "Jungle Maps" initiative in Calais/Dunkerke, which I find an interesting initiative to unfold realities behind migration :
\n\nhttps://twitter.com/JungleMaps\xa0and
https://www.facebook.com/junglemapping
And talk to Noemi.\xa0
', u'post_id': 5196, u'date': u'2016-02-25 23:01:57'}, {u'user_id': 3187, u'title': u'Undisclosed content ', u'comment_id': 32940, u'content': u'Undisclosed content', u'post_id': 5196, u'date': u'2016-02-25 17:36:17'}, {u'user_id': 8, u'title': u'Sign up for documentation duty and then show up :)', u'comment_id': 32931, u'content': u'Instructions for documentatin and how to add yourself to the team here:\xa0https://edgeryders.eu/en/lote5/documentation-harvesting-of-lote-what-why-how
\n\nSee you tomorrow
Hello all,
\n\nI'd love to join the workshop.
\n\nIn a way I have been a migrant for the past three years of my life. I didn't leave my country because of major social/political/economical issues. I left looking for something different because I couldn't fit in anymore with the cultural\xa0and social constraints I was surrounded by in my home country. A blessed\xa0and privileged migrant sure, still I can share part of the feeling of being alien and alienated.\xa0
\n\nAs part of the team working on the OpenCare project I'm confident we will have the chance to include migrants (and hopefully refugees) in the conversation and to involve them in the designing of the prototypes.
\n\nI believe the workshop would be a good way to set the right mind set and get inspired on how to reach and involve the communities of migrants.
\n\nCheers
", u'post_id': 5196, u'date': u'2016-02-22 11:17:26'}, {u'user_id': 3161, u'title': u'Undisclosed content ', u'comment_id': 32622, u'content': u'Undisclosed content', u'post_id': 5196, u'date': u'2016-02-20 13:40:50'}, {u'user_id': 4, u'title': u'Participants notes now ready ', u'comment_id': 32296, u'content': u'The team has produced participants notes for the Collaborative inclusion workshop. You can download them here. Please have a look at them before the event for more enjoyable, smooth participation.\xa0
\n\nBe advised that we expect a full house for this event. Be on time!\xa0
', u'post_id': 5196, u'date': u'2016-02-20 12:36:11'}, {u'user_id': 4, u'title': u'Registration bug solved', u'comment_id': 32256, u'content': u'The "Attend" button is back. If you want to register, use it. Merel,\xa0Natasia, Florianne and Joe Camacho are considered as registered.
', u'post_id': 5196, u'date': u'2016-02-20 15:06:41'}, {u'user_id': 4, u'title': u'Registration bug...', u'comment_id': 32238, u'content': u'Sorry, scrap that. I just noticed a registration bug. Your registration is noted, Florianne. Likewise, those of Merel and Nastasia.\xa0
', u'post_id': 5196, u'date': u'2016-02-20 12:15:16'}, {u'user_id': 4, u'title': u'Welcome aboard', u'comment_id': 32200, u'content': u'Hello Florianne, welcome aboard.\xa0
\n\nWe are delighted you want to participate. Please register for the event: in the text itself you will find \xa0the instructions. We expect a full house.\xa0
', u'post_id': 5196, u'date': u'2016-02-20 11:12:55'}, {u'user_id': 3158, u'title': u'would like to participate in the worshop next friday', u'comment_id': 32101, u'content': u"Hello!
\n\nMy name is Florianne. First a bit about my professional life...\xa0I work in public health with migrant communities in Barcelona, Spain. My background is humanitarian worker in refugee camps and conflict affected areas (mainly in Africa)\xa0for various institutions. I have recently come back from Lesbos volunteering with the refugees with some friends with similar backgrounds. We were inspired by the work done by the volunteers taking on a huge share of the work of receiving the refugees alongside the usual suspects of the trade. We did feel that this amazing energy could\xa0be better harnessed to provide a follow up for people arriving so that they are not left stranded and without help once they leave Greece, or when they arrive at their destination. Taking stock of all the local groups and projects that are currently working to help refugees, we did wonder: What happens to people who do not speak any european languages or even arabic? What happens to the ones who do not read and write, or use internet? Is there a way to provide information on resources available along the way to refugees/migrants at their point of entry so that the ones who are less 'networked' are not stranded? We are thinking of these questions as we prepare to go back to\xa0the local volunteer groups we worked with in Greece. We have also started to linking families we have met in Greece with people willing to meet them\xa0at their point of destination.\xa0I don't know if these are themes of interest for this workshop, but in any case I am quite interested\xa0to hear from all of you if you think I could contribute on behalf of our little group.
\n\nBest wishes!
", u'post_id': 5196, u'date': u'2016-02-19 14:06:20'}, {u'user_id': 3152, u'title': u'I would love to attend', u'comment_id': 31838, u'content': u'Hi all, I am Nastasja, Polish-German from Berlin, living currently in Brussels. I am project manager working mainly in communication and organization of cultural events. I was participating at the hack-with-refugees weekend a couple of weeks ago where we developed a project idea on the integration of refugees in the job market. The idea consists in valorising professional skills and qualifications by supporting refugees to develop their first CV in Belgium, translated and adopted to the Belgian job market in face-to-face meetings. We are currently working on the development of an adopted tool/method together with psychologists and HR specialists and we are aiming to collaborate with Fedasil and public authorities in Belgium. I would love to participate to this event, meeting inspiring people, contribute with my perspective, broaden my horizon and collecting further ideas for our social inclusion project. Looking forward to meet you!!
', u'post_id': 5196, u'date': u'2016-02-17 11:41:39'}, {u'user_id': 1584, u'title': u'I want to attend ', u'comment_id': 31548, u'content': u"Hi,
\n\nI want to attend this exercise as citizen with a design background.\xa0
\n\nI hear a lot about the refuges in the media but have never met one. It seems like they are kept in a bubble,\xa0and so am I!\xa0Bearing in mind that many have just went trough\xa0a traumatic experience,\xa0it's good\xa0to be keep in a\xa0protective bubble.\xa0But at the same time we have to learn to trust each, break the bubbles and\xa0cooperate.\xa0
\n\nI am not sure on the three\xa0criteria for the cases we have to bring, what are they?\xa0
\n\nCheers,
\n\nMerel\xa0
", u'post_id': 5196, u'date': u'2016-02-16 13:55:05'}, {u'user_id': 3076, u'title': u'Undisclosed content ', u'comment_id': 31166, u'content': u'Undisclosed content', u'post_id': 5196, u'date': u'2016-02-14 09:19:52'}, {u'user_id': 2201, u'title': u'Will do my best to join you! ', u'comment_id': 30498, u'content': u'Will do my best to join you!
', u'post_id': 5196, u'date': u'2016-02-13 20:42:08'}, {u'user_id': 4, u'title': u'15.00 CET', u'comment_id': 30486, u'content': u'@Iriedawta\xa0it is at 15.00 CET on Skype. Can you make it?
', u'post_id': 5196, u'date': u'2016-02-13 12:12:54'}, {u'user_id': 2201, u'title': u'Sure sure, this is what I wanted to ', u'comment_id': 30445, u'content': u'Sure sure, this is what I wanted to know Count me in! What time is the call? Will do my best to participate!
Cheers
', u'post_id': 5196, u'date': u'2016-02-11 19:51:01'}, {u'user_id': 4, u'title': u'The team is willing to work harder :-)', u'comment_id': 30327, u'content': u'... otherwise there is no difference! It\'s more me wanting to communicate that there is a small group committed to driving it. You are welcome to be on the team yourself There has been a separate Skype so far. The next one is Sunday 14th. Do you want to participate?
I work for a\xa0non-profit social enterprise alliance that employs different strategies aimed at improving the lives and well-being of the thousands of Syrian-Armenians impacted by the ravaging war in Syria.\xa0I\'m the only representative of the platform in Armenia and I multitask(social housing project in Dilijan, independent social workers\' unit in Yerevan, writing blog posts, helping some extremely vulnerable families to integrate, etc) and volunteer as much as I can. Here\'s my session at LOTE5, \xa0feel free to join or be a part of the team \xa0
What\'s the difference between the team and the participants in this workshop though? @Alberto
', u'post_id': 5196, u'date': u'2016-02-11 13:38:23'}, {u'user_id': 4, u'title': u'Thanks anyway', u'comment_id': 29562, u'content': u'Thanks @Adrian. seems like a great project!
', u'post_id': 5196, u'date': u'2016-02-10 23:37:25'}, {u'user_id': 2457, u'title': u'Intersting project', u'comment_id': 29129, u'content': u'Dear all,\xa0
\n\nUnfortunately I am only able to attend on the weekend! A link and a project that seems for me promising is\xa0https://kiron.university they set up a free online university of refugees - I guess a great way to supporting the transformation of a problem into an opportunity. Hope to meet at the weekend and all the best!
\n\nAdrian\xa0
', u'post_id': 5196, u'date': u'2016-02-03 10:36:43'}, {u'user_id': 3081, u'title': u'Take part to the reflexive design exercise', u'comment_id': 27877, u'content': u'Hello,
\n\nJust a few words to let you know that I intend to take part to the exercise but on a part-time basis as I\'m busy in the morning.
\n\nAs part of the orgaizing team of the "Hack with Refugees" event, I can also share briefly as requested the main elements of this activity and how it connects with the three main criteria for the conception of services.
\n\nKind regards
\n\nPhilippe Drouillon
', u'post_id': 5196, u'date': u'2016-01-31 14:55:46'}, {u'user_id': 3064, u'title': u'Undisclosed content ', u'comment_id': 26124, u'content': u'Undisclosed content', u'post_id': 5196, u'date': u'2016-01-21 09:06:02'}, {u'user_id': 4, u'title': u"Ok, we're in business then!", u'comment_id': 25096, u'content': u'Excellent, @Yara_Al_Adib!\xa0
\n\nWe\'ll be in touch very soon. Meanwhile, there are two things you could do to prepare this:
\n\nThanks a lot!
', u'post_id': 5196, u'date': u'2016-01-19 22:18:07'}, {u'user_id': 3064, u'title': u'Undisclosed content ', u'comment_id': 24205, u'content': u'Undisclosed content', u'post_id': 5196, u'date': u'2016-01-19 22:02:20'}, {u'user_id': 4, u'title': u'Done :-)', u'comment_id': 22152, u'content': u'Only one point of concern: no problem scheduling a meeting after 6, but the actual workshop will be during the day. At the moment it is scheduled at 10.30 pm Friday morning, the 26th of February (program). Will that be a problem?
', u'post_id': 5196, u'date': u'2016-01-19 21:54:56'}, {u'user_id': 3064, u'title': u'Undisclosed content ', u'comment_id': 20882, u'content': u'Undisclosed content', u'post_id': 5196, u'date': u'2016-01-19 21:51:28'}, {u'user_id': 4, u'title': u'Yes, do come! ', u'comment_id': 17677, u'content': u'@yaroosh, thank you so much for this offer! Yes, you are just the person we need. Welcome aboard! We will make you a co-host of the event, together with @Ezio_Manzini.
\n\nWhere are you based? In a few days it would be nice to make the final decisions on this workshop and open up registrations. If you are in Brussels, we could even meet in person, maybe also with @Nadia, @ireinga\xa0and @KiraVde. If not... Skype or Hangout or even good old phone.\xa0
', u'post_id': 5196, u'date': u'2016-01-19 21:42:44'}, {u'user_id': 3064, u'title': u'Undisclosed content ', u'comment_id': 15750, u'content': u'Undisclosed content', u'post_id': 5196, u'date': u'2016-01-19 21:15:58'}, {u'user_id': 26, u'title': u'Mr. Manzini, do it again in Berlin in April, please!', u'comment_id': 7756, u'content': u'I am currently organising a product design project at UdK Berlin around the OpenCare topic and would love to invite you to Berlin from April 4-8 to support us with your knowledge and input. The project is a cooperation with Nadia and it would be super awesome if you could come! The project aims at providing the research project with first ideas/products/services to work with further on. I have organised this place for the workshop and look forward to your response! Thank you!
', u'post_id': 5196, u'date': u'2015-12-08 15:24:48'}, {u'user_id': 8, u'title': u'At our space in Brussels :))', u'comment_id': 10900, u'content': u'A number of us got into really deep conversations, which I think everyone needed some time to process. But it is a conversation in progress, so I thought it might be a good idea to continue. Plus everyone\'s so cool, it would be nice to meetup again
... but it seems like a great idea. Where is it?\xa0
', u'post_id': 5406, u'date': u'2016-03-03 17:37:42'}, {u'user_id': 2464, u'title': u'Tulip it is', u'comment_id': 23566, u'content': u'I re-read the paper and made myself a map of the story with Tulip, extracting names of persons and/or organizations by hand. The grouped nodes with outer/inner labels is one of the marvelous things you can do with the software
@melancon how did you make it?
\n\nit\'s generated or drawn and from what data you found in the article?
\n\nthanks
\n\nZoe
', u'post_id': 5392, u'date': u'2016-03-03 16:15:51'}, {u'user_id': 4, u'title': u'Accidental breakthrough?', u'comment_id': 17129, u'content': u'You seem to have stumbled into networks as a storytelling technique. Of course all visualisations tell stories, but in OpenCare we are telling stories of collaboration and interconnectedness, so networks work particularly well.\xa0Is it worth doing some work on, trying to come up with self-explanatory visualizations?
', u'post_id': 5392, u'date': u'2016-03-03 17:36:08'}, {u'user_id': 2464, u'title': u'Mea culpa', u'comment_id': 14203, u'content': u'I can\'t explain why I got it all wrong. Went back to the news article and read it carefully this time. Even made a network map of the story to claim your forgiveness ... (would be even more convincing if animated).
\n\n', u'post_id': 5392, u'date': u'2016-03-02 18:24:00'}, {u'user_id': 4, u'title': u'"Solo heroes"? ', u'comment_id': 10762, u'content': u'Solo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!
', u'post_id': 5392, u'date': u'2016-03-02 15:20:26'}, {u'user_id': 2464, u'title': u'Incredible story', u'comment_id': 6667, u'content': u'Great, great story.
\n\nIt is however reported as a solo heroic strive rather than as a community effort. The article does mention the "biotech hacker space Counter Culture Labs", and then the Open Insulin project, but makes it sound as if the individual initiative were what mattered in solving the situation.
\n\nI would be interested to know more about the story, and learn about the collective effort that was put in. (Although it could well have been the result of individual effort after all.)
\n\nOn "where to put this stuff", I suppose we should start archiving these stories somehow. My guess is a wiki would do it ok (but I understand ER wikis have been used as single page wikis most of the time). A (collection of) hackpad (or anything similar)\xa0would probably be fine.
', u'post_id': 5392, u'date': u'2016-03-02 08:03:01'}, {u'user_id': 4, u'title': u'Moved everything here', u'comment_id': 9597, u'content': u'@melancon, I rewrote your text for outreach purposes. Do change what you don\'t like. I also had to move the content to a newly created event for technical reasons.\xa0
\n\n@markomanka\xa0and @Luciascopelliti, please note that I have enrolled you.\xa0
\xa0It will be fun! Please click on the "attend" button. Same goes for @MoE\xa0and @dora\xa0and whoever is interested. @mstn? @maxlath? @danohu?\xa0
Good. Thanks for helping. You have a talent it would take me yet another life to learn
Funny, I always say the same of you.\xa0
hi alberto!
\n\nCan I facilitate even if I must leave at 1 pm?
', u'post_id': 5260, u'date': u'2016-02-04 12:04:30'}, {u'user_id': 4, u'title': u'Yes', u'comment_id': 13766, u'content': u'I see your role as helping to shape questions, i.e. map the methodology we\'ll be working with onto care in general and OpenCare in particular.\xa0
I'm in
", u'post_id': 5260, u'date': u'2016-02-04 13:43:21'}, {u'user_id': 4, u'title': u'So...', u'comment_id': 17900, u'content': u'... please click on the "Attend" button. While you are at it, please do the same on the LOTE5 event here. @Rossana_Torri, can you do it too please? I will explain better the rationale for this when we meet in Brussels.\xa0
I did it for the LOTE event.
\n\nUnfortunatly I have to fly back to Milan on Friday evening...
\n\nLucia will stay for MoN till Sat morning.
', u'post_id': 5260, u'date': u'2016-02-18 09:58:41'}, {u'user_id': 4, u'title': u'"Yes, but what will we DO?"', u'comment_id': 21472, u'content': u'@melancon, my friend: our text is clear and nicely written, but it is not a work program. I added a tentative agenda section. Please look it up and see if you think it makes sense. If it does, assign yourself as the coordinator of a challenge... or maybe let\'s decide to do only one challenge, so we can hack together!
\n\nI kind of like the idea of the quality challenge.\xa0
Input from all participants welcome! @MoE\xa0@dora\xa0@Betty_Gorf\xa0@jimmytidey\xa0(Jimmy, are you coming?)
', u'post_id': 5260, u'date': u'2016-02-05 17:18:22'}, {u'user_id': 2464, u'title': u'Need a hand', u'comment_id': 23632, u'content': u'\n\nI was about to edit the text of the event, but I thought I should double-check -- I admit I have but no experience in organizing things the way it takes place on edgeryders.eu
\n\n@Noemi, I deliberately put you as coordinator for the interpretation -- without asking you first whether you would like to, or even be available! I only did it based on your past experience of previous MoNs. I know you would do a marvelous job.
\n\nGuy
', u'post_id': 5260, u'date': u'2016-02-10 19:05:25'}, {u'user_id': 3, u'title': u'Flattered but..', u'comment_id': 26992, u'content': u'Thanks @melancon. The only issue I see is that I have to moderate the European Capitals panel Saturday starting 2PM.\xa0
\n\nI would also recommend @Hazem\xa0for the job, as he is joining us for Lote, has been doing previous work with Edgesense and knows the ER network well enough.
', u'post_id': 5260, u'date': u'2016-02-11 12:13:21'}, {u'user_id': 2464, u'title': u'How about teaming up', u'comment_id': 27326, u'content': u'Thanks @Noemi
\n\nHow about teaming up with @Hazem in the morning and then leaving (the most fabulous) MoN4 to join your afternoon session?
\n\n@Hazem, please let me know whether this suits you.
\n\nGuy
', u'post_id': 5260, u'date': u'2016-02-11 16:25:52'}, {u'user_id': 1935, u'title': u'count me in ', u'comment_id': 27450, u'content': u'sure will be there.
', u'post_id': 5260, u'date': u'2016-02-12 19:14:33'}, {u'user_id': 2464, u'title': u'Good', u'comment_id': 27509, u'content': u'@Hazem So you are now officially coordinating the interpretation challenge!
\n\nLooking forward to meet you at LOTE5.
\n\nGuy
', u'post_id': 5260, u'date': u'2016-02-16 17:34:51'}, {u'user_id': 2945, u'title': u'Network newbie with graphic and statistics background', u'comment_id': 27882, u'content': u"I am relatively new to networks, but i'm working on a serious project with networks and i have a background in graphic design and in statistics. I can program in R but won't be able to bring a laptop.
\n\nI am particularly interested in the visualisation challenge and looking forward at meeting you all!
", u'post_id': 5260, u'date': u'2016-02-14 21:46:21'}, {u'user_id': 2464, u'title': u'Grrrrreat!', u'comment_id': 28486, u'content': u'@RossellaB Do not forget we all were newbies at some point, and will probably remain newbies on so many topics till the end. I am real happy to count you in.
\n\nLooking forward to code in your company
Guy
', u'post_id': 5260, u'date': u'2016-02-16 17:36:20'}, {u'user_id': 2945, u'title': u'Thanks Guy! That is certainly true. ', u'comment_id': 28739, u'content': u'Thanks Guy! That is certainly true.
', u'post_id': 5260, u'date': u'2016-02-17 11:07:59'}, {u'user_id': 2945, u'title': u'Question about Detangler', u'comment_id': 29132, u'content': u"I was having a look at Detangler and I don't understand what the coordinates x and y stand for. I can see scatter plots and bar plots but I don't know what they tell about the network. Can someone help me out?
", u'post_id': 5260, u'date': u'2016-02-17 11:47:46'}, {u'user_id': 2464, u'title': u"It's all in the interaction", u'comment_id': 29998, u'content': u'Hi @RossellaB, good to see you are playing with Detangler.
\n\nFirst thing you need to know is that nodes on the left panel (substrates) are the main focus. Those substrates relate to one another through nodes on the right panel (catalysts). Catalysts are the "reasons" why substrates relate to one another. In the demo example, people get connected because they co-participate to political lodges (you may have recognized names from the so-called Paul Revere night ride from the American revolution). The quest is to try to figure out, for instance, who was in a position to reach all of those guys pretty quickly (in order to organize a mutiny before the British authority could counterfeit them).
\n\nThe x, y position of nodes is decided in the following way: nodes on the right panel are displayed using a force-directed layout (ask me if you have no idea what that is). There is no absolute meaning in the x or y value, nodes are just positioned so as to have a readable display.\xa0Nodes on the left panel are positionned according to how they relate to nodes in the right panel. The layout attemps at mimicking the layout on the left, substrates are positionned "around" the catalysts to which they correspond (although catalysts are not embedded in the panel. The reason is to make the selection more natural: when you select substrates\xa0at the top in the left panel, you may expect the corresponding catalysts to be located at the top in the right panel.
\n\nThe main feature is the easy selection of substrates or catalyst\xa0using the lasso.
\n\nWe\'ll be using Detangler with substrates=people and catalysts=topics, for instance.
\n\nEnjoy!
', u'post_id': 5260, u'date': u'2016-02-17 13:17:15'}, {u'user_id': 2945, u'title': u'thanks! ', u'comment_id': 30328, u'content': u"Thank you for the explanation Guy, now it starts to make sense. I know more or less what a force directed layout is, although I'm not familiar with the maths behind it.
", u'post_id': 5260, u'date': u'2016-02-21 09:05:17'}, {u'user_id': 4, u'title': u'MoN4 stage-setting conference call! ', u'comment_id': 30637, u'content': u'@melancon, are you free for an hour on Friday, say 15 to 16? I would like to touch base with you on the finishing touches to MoN4.
', u'post_id': 5260, u'date': u'2016-02-17 19:46:41'}, {u'user_id': 1543, u'title': u"I'm in", u'comment_id': 31167, u'content': u'Hi everybody,
\n\n\xa0 I\'m sorry for the long silence but it\'s been a long any busy period for me.
\n\nI just wanted to confirm I\'ll be attending MoN4 with @dora (we have accomodation sorted).
\n\nWe also made some progress with python, relatively to my last updates on ER, but not recently. I\'m planning to get back to the code next weekend and I\'m confident I\'ll be able to give you a better update, then.
\n\nI can\'t wait to meet you in person
Cheers,
\n\ns\xa0 t\xa0 e
', u'post_id': 5260, u'date': u'2016-02-17 23:34:14'}, {u'user_id': 2464, u'title': u'Friday 3pm -- ok', u'comment_id': 31549, u'content': u'3pm - 4pm and more if necessary.
\n\nI guess you had a look at the (tentative) agenda, and also saw I wish\xa0to give MoN4 a participatory design workshop twist.
\n\nDo we open the call to all, or keep it between facilitators (@Hazem?), or us two?
', u'post_id': 5260, u'date': u'2016-02-18 06:22:00'}, {u'user_id': 4, u'title': u'Open', u'comment_id': 31702, u'content': u'... so, on Google Hangout, because you can join them with just the link. \xa0No Skype.\xa0
', u'post_id': 5260, u'date': u'2016-02-18 16:36:31'}, {u'user_id': 2464, u'title': u'How do I extract the STF posts', u'comment_id': 31839, u'content': u"Is there a tag or something I can grab so I know a post is relevant to STF.
\n\nI also need to be helped on the ethno posts, which for now I cannot really exploit.
\n\nWe'll talk about all this tomorrow I guess.
", u'post_id': 5260, u'date': u'2016-02-18 14:36:56'}, {u'user_id': 1543, u'title': u'A bit confused', u'comment_id': 32102, u'content': u'I finally took some time to read thorugh the most recent program and comments and I am a bit confused...
\n\nWe started having a plan, with @dora, about what could be done with the Wikipedia data we managed to mine but I see there\'s no mention of Wikipedia at all, in this page, so I was wondering whether you\'re giving up on that end or it was just left aside for the moment, or... ?
\n\nAgain, I\'ll be catching up with the code stuff this weekend. In the meanwhile, I\'d ask: are you planing to have just 2 hours of prototyping for the proof of concept? Ain\'t it a bit too shrinked?
\n\nI see that properly structuring ideas is the most relevant aspect of the hackathon, but I fear that not having enough time to make them into proper, working pieces of code might risk to end up producing mainly fluff... I hope I won\'t sound harsh in saying this, I would just hear what\'s your take
', u'post_id': 5260, u'date': u'2016-02-19 00:01:19'}, {u'user_id': 4, u'title': u'But, hackathon', u'comment_id': 32201, u'content': u'@MoE, to what @melancon\xa0writes I would like to add two\xa0things.
\n\nFirst, this is a hackathon, and that means we enjoy a lot of freedom. If you have done preparatory work on Wikipedia data, you are more than welcome to lead a track on Wikipedia data! We\'ll treat it as we\xa0treat the other tracks \u2013 in fact, I might drop my quality\xa0challenge and join it myself. We also reserve the right to keep hacking into Sunday \u2013 I\'ll definitely do it if we really get going.
\n\nSecond, the time limitations will be mitigated by several factors. The first one is good preparation \u2013 join the MoN4 call right now to find out more. \xa0The second one is the usual trick of all hackathons: we just stay in touch (through GitHub and other channels) and finish our work in remote. The third one is the LOTE5 freedom that I mentioned above. We should be OK.
', u'post_id': 5260, u'date': u'2016-02-19 14:09:21'}, {u'user_id': 1543, u'title': u'Sounds Good', u'comment_id': 32239, u'content': u'Hi @Alberto (I have often problems with mentions\' hints not appearing, and therefore such mentions not being recognised; is it a known issue or is it just me?)
\n\nWhat you say makes sense and is reassuring. I\'m trying to re-organize the several proofs of concept which we put in place with @dora, to have a unified simple tool that we might use to query wikipedia and store responses to a database, for later visualization.
\n\nBased on what we managed to fetch via the API, here\'s what I was thinking:
\n\nwe have a list of the medicine pages
for each page, we can query the pageviews, the links to other wikipedia pages and the translations into other languages
for each link to other wikipedia pages, we can tell whether they\'re medicine pages or not; if they are, we can record they\'re semantically connected
for each page translation we can repeat the above queries and store the relative data
With the stored info we could try to analyze:
\n\nwhich pages are connected, assuming their sub-network might represent a certain topic
which pages (in absolute and relatively to a certain sub-network) have most views
for each topic or sub-network, what is the weight of a specific language in the overall page count
Things we might learn:
\n\nhigher page counts of certain topics might represent higher interest and/or practice of autodiagnosis for such topics (I\'m aware that what\'s actually relevant is how to tell between the two but we can investigate this further)
existance of page translations in certain languages might imply a geographical and/or ethnographical relevance for certain areas and/or ethnies
higher page counts for a certain topic, in a certain language, might be relevant too
Thinking of Edgesense and ways to use it (maybe) differently than what it was designed for, we might have nodes representing pages as "semantic knots" (more than "bits of conversation") and connections representing their semantic affinity. Edgesense could then be used to analyze whether the sub-regions it finds match the ones we found as wikipedia\'s internal links (mentioned above).
\n\nWe could also visualize page counts for each sub-region and each node, both as a global count (including all languages) ans as a "filtered" count, per ethnographic group.
\n\nFinally, if we imagine this visualized in three dimensions, we might have:
\n\na planar XY mapping, with all the English medicine pages, where all connections are visualized and semantic sub-regions are highlighted (the distributions of nodes in 2D space wouldn\'t necessarily have a geographical meaning)
a Z layering, where at each depth/height we have a "language plane" which shows which of the English pages are translated in a certain language
Connections would exists across layers, giving a "volumetric" representation of medicine semantic networks.
\n\nI guess this last bit might sound particularly abstract or confusing, until I manage to sketch a graphic prototype. I hope I\'ll be able to do it soon, on paper at least, to try explain the idea a bit better.
\n\nIf anything of what I wrote makes sense to any of you, let me know
I think I understand. You want to do two things.
\n\nWhat I like about the approach is that it is relatively\xa0simple to compute correlation coefficients across different versions of (medical)\xa0Wikipedia. Correlation betweeen two languages is high if the probability of being connected of two random\xa0pages in language A, conditional to those two pages being connected in language B, is close to 1. Notice that you could do this without even looking at page counts!\xa0It\xa0seems like a lot of work for one day of hacking, but if that\'s what you want to do, go for it.\xa0
', u'post_id': 5260, u'date': u'2016-02-20 16:12:06'}, {u'user_id': 1543, u'title': u'"Multiplex Network" sounds sleek! :)', u'comment_id': 32263, u'content': u'I had no idea that was called a multiplex network but I googled it and, yes, it looks exactly like what I was thinking.
\n\nWhen I mentioned a 3D visualization, I had in mind exactly this:
\n\n
where each coloured layer is a language, each dot is a page, each link between pages sybolizes a semantic affinity. @Alberto we\'re on the same page, right?
\n\nRegarding @Alberto\'s and @melancon\'s concerns about time, I agree. The whole process might not be trivial nor quick.
\n\nOn one end, that\'s why I hoped we would have had more than 2 hours of programming; but after what @Alberto replied, I think it is reasonable to think of a simple proof of concept (we choose one question and prove via code how we "could" provide an answer). If that proves to be worth it, I/we can invest some more time the day after, to extend the code and produce something more meaningful.
\n\nOn the other end, I was trying to produce as much code and db data as I can, to have a good base to start with (and to share with everybody else, obviously).
\n\nSo far I have most of the code in place to do the data mining. I had to go through a few iterations, as we have limited db storage (free account on mongolab) and I needed to find a way both to do quick grouped queries and to store the results efficiently enough. I think I\'m pretty close: I could store around 25K entries in around 6Mb (of 200Mb we are allowed) in a few hours. These entries count 4.5K English pages and all their available translations in any language. This means that within 24h we should be able to populate the db with all the pages, from scratch.
\n\nThis does not include the page counts, though, which require a separate query and I\'m still figuring out if there\'s a way to optimize those (ie. not sending a query per page).
\n\nI\'ll test this later or tomorrow, but I\'m confident I can get decent results in reasonable time.
\n\nThis partially answers @melancon\'s question about what I\'m storing. In terms of page counts, both because of time and storage restrictions, I was thinking to store sample counts for a given period (ie. 1 month of pagecounts, per day), instead of a tighter sampling.
\n\nI thought that, for the sake of demonstration, any timeframe can be used to prove the concept, and we can assume that the real measures will then take place on more accurate/representative data.
\n\nDo you think it is acceptable, as an assumption?
\n\nDoes it still sound too scary? I trust your judgement guys, seriously
', u'post_id': 5260, u'date': u'2016-02-22 23:17:43'}, {u'user_id': 2464, u'title': u'Multiplex it is', u'comment_id': 32266, u'content': u'\n\nYes, multiplex. I find this a convenient concept, probably more buzzwordy than deep -- anything is multiplex if you think about it ... it depends on what you are ready to term a layer ... We\'ll have plenty of time to chew about this.
\n\nYou got things right. There are several ways to compute similarity between entities described by a "bag of words" (which you can actually see as embedded in a high-dimensional vector space ...). The better your index (words associated with entities), the better the similarity measures, from which you usually derive a topology by linking similar enough entities. As for the pagecount, I would expect larger time span to lead to\xa0somehow uniform pagecounts over all pages, while finer time spans may\xa0indicate when/if pages are simultaneously consulted.
\n\nThe link structure you consider, the similarity measure you computeIt all depends on what question/task you are supporting.
\n\nAs I see it, you have done quite a lot of work and will be bringing fantastic material to the workshop. This may well open the door to interesting future collaboration. I mean, people usually get together to finish up what has been done during the workshop, sometimes\xa0ending as blog posts, repots, or even scientific publications. In this case, my feeling is we may have things to say to the academic crowd. @Alberto?
', u'post_id': 5260, u'date': u'2016-02-23 08:46:00'}, {u'user_id': 4, u'title': u'Mentions module', u'comment_id': 32268, u'content': u'The mentions module started acting up after we upgraded the site to the newest version of Drupal Commons and is currently disabled. See here.\xa0
', u'post_id': 5260, u'date': u'2016-02-20 16:18:54'}, {u'user_id': 2464, u'title': u'Blame it on me', u'comment_id': 32297, u'content': u'Hi @MoE,
\n\nyou are right, we decided in the end not to include anything about Wikipedia/data in the final program,
\n\nmainly because we feared there wouldn\'t be much to investigate. The motto for MoN is to have clear domain questions together with data, and then mine and visualize the data in ways that can help refine the questions, then iterate until you reach some sort of answers.
\n\nWe had also included the EdgeRyders conversation data from the beginning, in order to also have a chance to look at this type of data -- although what we have for the moment is less concerned with care. It is that type of data OpenCare has planned to deal with (people interacting and discussing issues -> socio-semantic network).
\n\nPagecounts did not seem to offer a tangible\xa0opportunity to look at how people perform self-diagnosis. So we (@Alberto and I) had to decide not to include them in the final MoN program.
\n\n--
\n\nNow, regarding your comment on the risk of being "shrinked" by time ... well, it is real. Previous\xa0MoN sessions expanded over two full days. This time, we had to cope with lots of constraints both on the OpenCare and LOTE5 side. To help with this, I will make data available later today, hopefully with some code snippets, so we can save time and still do some work.
\n\nHope this helps.
', u'post_id': 5260, u'date': u'2016-02-19 07:00:00'}, {u'user_id': 1543, u'title': u'Zero Blame', u'comment_id': 32382, u'content': u'Seriously, I hope I didn\'t give the wrong impression. I can only appreciate the organic way topics naturally adapt, here on ER, depending who\'s active in the discussions. I wasn\'t for a while, so it\'s legit that the topic might have faded in favour of others
I was asking, simply because I had spent some time on the Wikipedia thing and I thought something interesting could be observed (or we could at lease try). I tried giving a hint of my thoughts above, as a reply to @Alberto. I\'d be happy to hear what you think.
\n\nPeace
s\xa0 t\xa0 e
', u'post_id': 5260, u'date': u'2016-02-20 14:58:55'}, {u'user_id': 3143, u'title': u'my skills', u'comment_id': 32464, u'content': u'Hello!
\n\nI\'d like to attend the session and I think my skillset will be a good fit for the viz or interpretation team:
\n\npaper prototyping / brainstorming
D3js (HTML, CSS)
Looking forward to join and hack
Hi @alessandro-contini,
\n\nplease join, I\'ll be more than happy to have you on board, I am most sure you can contribute with great design ideas and/or improvements, and even paper mock-up!
\n\nd3 is so great, would be nice to have some of our stuff put up on the web too.
\n\nSee you in Brussels next week
\n\nGuy
', u'post_id': 5260, u'date': u'2016-02-19 15:38:53'}, {u'user_id': 2464, u'title': u"Let's do it!", u'comment_id': 32623, u'content': u'@MoE this is great news. I didn\'t dare put that forward for MoN4 as I fear I would not be able to keep up to my promise.
\n\nIt\'s seems you have already done part of the work, and about all of the thinking. Then go ahead, I\'ll register to your session
I am quite sure I will learn from your experience. And if I understood correctly, you already have put up a db registering pageoucnts on an hourly basis -- all great news.
\n\nLooking forward to see you in Brussels next week.
', u'post_id': 5260, u'date': u'2016-02-20 17:05:28'}, {u'user_id': 2464, u'title': u'Getting ready', u'comment_id': 32719, u'content': u'To those of you who plan to attend to Mn4, and more particularly to those I expect to actively "play" with networks:
\n\n@Alberto @Hazem @dora @MoE @RossellaB\xa0-- I must be forgetting someone ...
\n\nWe will be using the Tulip network viz framework. Tulip can be downloaded from its homepage\xa0(follow the download link). Other options are also possible, but we might enjoy Tulip\'s python scripting capabilities. The Tulip API is quite intuitive, although the doc could be improved. I\'ll be there to help.
\n\nHere is a file you could load after installing Tulip (install is easy, unroll the .exe or .dmg depending on the OS you are using). The file contains users, posts and comments, together with associated\xa0tags. All networks in this file connect different types of entites, users to posts or comments, comments to tags,\xa0etc. That\'s why it is named "bipartite".
\n\nOur task will be to explore how we may then model\xa0interaction between users,\xa0inferred from the available traces (comments to posts, by whom, etc.).
\n\nOnce we have a user-to-user file, we will then want to use Detangler to inspect tags around which interaction takes place. I plan to make some code available to ease the process of producing Detangler files from user-to-user networks built with Tulip.
', u'post_id': 5260, u'date': u'2016-02-24 14:35:00'}, {u'user_id': 1935, u'title': u'am having problem with installing tulip on ubuntu...am ', u'comment_id': 32762, u'content': u'am having problem with installing tulip on ubuntu...am still new with ubuntu so might need some help. will try again in the morning though
', u'post_id': 5260, u'date': u'2016-02-25 02:47:05'}, {u'user_id': 2464, u'title': u'Asking for help', u'comment_id': 32829, u'content': u"I am not that used with Linux myself.
\n\nDid you have a look at the sourceforge\xa0forum?\xa0In case you do not find proper help, please send email to Patrick Mary <mary@labri.fr>, cc'ed to me. He is the main engineer in charge of Tulip.
\n\nGuy
", u'post_id': 5260, u'date': u'2016-02-25 08:15:59'}, {u'user_id': 2945, u'title': u'Hackpad: please read and make improvements', u'comment_id': 32900, u'content': u'Hi all,
\n\nIt was really great meeting you today! I have written a report on the spot on the hackpad for this group.
\n\nPlease have a look and make adjustments.
\n\nEnjoy the rest of the meetup and see you all online soon!
\n\nRossella
', u'post_id': 5260, u'date': u'2016-02-27 15:53:57'}, {u'user_id': 4, u'title': u'Hackpad updated', u'comment_id': 32932, u'content': u'Great work, @RossellaB.\xa0I have made some improvements to the hackpad myself.\xa0
\n\nThe main thing we need now is the code for the Wikipedia track by MoE and Dora.\xa0
', u'post_id': 5260, u'date': u'2016-03-01 10:15:10'}, {u'user_id': 3028, u'title': u'Wikipedia code', u'comment_id': 32941, u'content': u'Hi there, thank you so much for the event, it was a nice experience!
\n\nOur Wikipedia code is a branch of the spaghetti-open-data GitHub repository. The branch is called "dev-moe" and I think Moe has already sent a merge request.
\n\nYou can browse the code here: https://github.com/FuturoAnteriore/visualizing-self-diagnosis/tree/dev-moe
\n\nCheers!
', u'post_id': 5260, u'date': u'2016-03-01 10:25:30'}, {u'user_id': 4, u'title': u'Thank you!', u'comment_id': 32946, u'content': u"It was great to meet you Dora, you guys are really impressive and we hope we'll stay in touch.\xa0
\n\nI have not seen pull requests yet...
", u'post_id': 5260, u'date': u'2016-03-01 10:37:40'}, {u'user_id': 4, u'title': u'Documentation uploaded', u'comment_id': 32953, u'content': u'https://edgeryders.eu/en/lote5-doc/documentation-masters-of-networks-networks-of-care
', u'post_id': 5260, u'date': u'2016-03-03 14:08:20'}, {u'user_id': 4, u'title': u'Documentation uploaded', u'comment_id': 26127, u'content': u'https://edgeryders.eu/en/lote5-doc/documentation-how-to-cope-with-meltdowns-in-communities-john
', u'post_id': 5139, u'date': u'2016-03-03 11:48:15'}, {u'user_id': 2915, u'title': u'Projector', u'comment_id': 24006, u'content': u'I have a Macbook Pro and an projector adapter, so hopefully it will all work. \xa0I have a bunch of slides that are text - they are phrases or ideas. \xa0So\xa0could get along without them, but I think they are helpful. \xa0I won\'t need sound.
\n\nI gave a talk a couple of years ago that was recorded and is available to view as a .mov (Origins of Online Community:\xa0http://johncoate.com/Origins%20of%20Online%20Community%20Sydney%202013.mov)\xa0at johncoate.com that tells stories about how my journey and online community began. \xa0It is loaded with photos. \xa0I recommend\xa0to whomever attends to view it first. \xa0I think it\'s pretty entertaining. \xa0Also there is a set of podcasts from a long interview I gave to German public radio that really goes into detail. \xa0Because of those ad because I only have 30 minutes, I will not be repeating all that is in those pieces.
\n\nI feel pretty good so far. \xa0I\'m in treatment (prostate cancer), but the heavy stuff won\'t start until later in April. \xa0So I ought to be able to bike ok. \xa0Weather permitting. \xa0I am otherwise a healthy person.
', u'post_id': 5139, u'date': u'2016-02-20 17:27:23'}, {u'user_id': 2694, u'title': u'Projector needs', u'comment_id': 20395, u'content': u'Hi John!
\n\nI\'m trying to prevent technical errors from occuring and for that I\'d like to know whether you\'d like (a) a projector for your keynote (b) sound (not sure I can guarantee this) and (c) anything else?
\n\nAlso if you\'re back in good health and\xa0would still like your biking tour of Brussels, we can make that happen. Question is when.
\n\n
Happy new year John. Hope this one brings you lots of love and health. Fingers crossed!
', u'post_id': 5139, u'date': u'2016-01-06 14:25:21'}, {u'user_id': 2915, u'title': u"I'm still trying", u'comment_id': 15855, u'content': u'I am working on scheduling a major surgery in January that will hopefully allow me enough recovery time that I can still come and do this.\xa0 I can only say at this point that it is my intention and very strong wish to make it.\xa0
', u'post_id': 5139, u'date': u'2016-01-05 18:00:32'}, {u'user_id': 3, u'title': u'!!', u'comment_id': 9136, u'content': u'I do hope this means you are slowly reaching the decision to come, John. Fyi I took the liberty to add your session as a keynote at the beginning of the event on Feb 25th (see draft program here), but of course it depends on your preference and future changes. Let me know if you have a preference for a different slot, starting anytime in the afternoon of the 25th or 9 am the following days.\xa0
', u'post_id': 5139, u'date': u'2016-01-05 17:26:34'}, {u'user_id': 3027, u'title': u'Undisclosed content ', u'comment_id': 16070, u'content': u'Undisclosed content', u'post_id': 5223, u'date': u'2016-02-22 23:41:28'}, {u'user_id': 2694, u'title': u'What are your needs :-)', u'comment_id': 8123, u'content': u'Hi Meredith!
\n\nWhat are your technical needs? Will you use a projector during your talk? Are you bringing your computer/expecting audience\xa0to bring theirs?
\n\nCheers!
', u'post_id': 5223, u'date': u'2016-02-20 09:26:42'}, {u'user_id': 4, u'title': u'No streaming', u'comment_id': 28715, u'content': u'We do not have the resources to do this. Also, we insist on LOTE being very participatory. You can really not do LOTE from home.\xa0
', u'post_id': 5229, u'date': u'2016-02-18 18:04:29'}, {u'user_id': 1003, u'title': u'Streaming / Hangout', u'comment_id': 28430, u'content': u'Hi,\xa0
\n\ncan we organise a private streaming/hangout for the people in our teams that are not in Brussels?\xa0
\n\nDo we have enough bandwidth? Are we all using microphones?\xa0
\n\n', u'post_id': 5229, u'date': u'2016-02-18 15:56:07'}, {u'user_id': 4, u'title': u'This is more up-to-date', u'comment_id': 27304, u'content': u'https://edgeryders.eu/en/lote5/program
\n\nLook to the left column, on care.
\n\nStill a few changes to make (like the OpenCare files, that we just agreed upon), but almost there.\xa0
', u'post_id': 5229, u'date': u'2016-02-11 11:29:28'}, {u'user_id': 1442, u'title': u'ok great', u'comment_id': 26909, u'content': u'Then these are the open meetings of Opencare during LOTE5 :
\n\nhttps://edgeryders.eu/opencare/kickoff-meeting-program
', u'post_id': 5229, u'date': u'2016-02-11 11:18:35'}, {u'user_id': 4, u'title': u'Not open', u'comment_id': 24913, u'content': u"In the sense of: no event page, no link to join it etc. This is because it's mainly a team building exercise. Exceptions allowed on a case-by-case basis. LOTE5 care track provides opportunities for the consortium to interact with non-consortium people. In general, I suggest you rather invite them to the care track public events that you like.\xa0
\n\nWe'll probably do it in our own office (the Edgespace), and try to make it cosy and relaxed.\xa0
", u'post_id': 5229, u'date': u'2016-02-11 11:13:14'}, {u'user_id': 1442, u'title': u'is this an open meeting?', u'comment_id': 23822, u'content': u"can we invite interested people that are not part of the consortium?
\n\nI'd leave the slot at 15pm free so we can use it if we are going slow on previous sessions or we need to discuss a specific topic coming up during the day.
\n\nlooking forward to meet you all.
\n\nbest
\n\nZoe
", u'post_id': 5229, u'date': u'2016-02-11 11:07:51'}, {u'user_id': 854, u'title': u'Works for us. Looking forward ', u'comment_id': 22639, u'content': u'Works for us. Looking forward
', u'post_id': 5229, u'date': u'2016-02-03 10:43:04'}, {u'user_id': 4, u'title': u'Neither', u'comment_id': 22144, u'content': u"I propose:\xa0
\n\nWhy this session? In terms of what we must deliver, the situation is clear: that's detailed in the GA, nothing to talk about. But in terms of how these activity fit into the bigger picture of what we all are trying to do, that's a different story. We explore together what each of us sees just outside of OpenCare, and how our other activities and OpenCare can help each other and feed into each other. The project of an OpenCare clinic is an example: that's not a deliverable of OpenCare, but if we did manage to make one it would add incredible value. Conversely, OpenCare would lend an OpenCare clinic a very large value. I conclude it does not make sense to just think project management and deliver the project. We must to that, but as we do it we must never lose sight of the bigger picture. Hence the insistence on goals.\xa0
\n\nWorks?
", u'post_id': 5229, u'date': u'2016-02-02 14:34:44'}, {u'user_id': 854, u'title': u'What we\u2019ll do: goals, epic goals, project narrative...', u'comment_id': 20862, u'content': u'...can I ask you what is the policy for "active contributions"? Are we meant to prepare small presentations (I would guess around 15minn each, by dividing what\'s left after the 20minn of introduction for the number of expected contributors)? Or are we meant to have a nicely chaotic conversation?
May I add a word after Alberto\'s introduction.
\n\nOne strength of OpenCare is our diversity.
\n\nThis means the 10:00 session "What we\'ll do" is in a sense critical. We have to open our minds and see the pictures drawn by colleagues when describing their universe and contributions to OpenCare. Conversely, this means we each have to make special efforts so listeners have a crunch and jump in.
\n\nGuy
', u'post_id': 5229, u'date': u'2016-01-27 17:05:09'}, {u'user_id': 3, u'title': u'Welcome from me too!', u'comment_id': 12902, u'content': u'So nice to meet you @LuceChiodelliUB, and glad to see the team is growing. Happy you found your way here. I will be going community management in OpenCare and have been doing it for the last 4 years on Edgeryders (which is more a shared task given that sometimes there\'s just too many projects/ people coming on board in parallel).\xa0
\n\nSo for anything platform related or where information is stored here on edgeryders, don\'t hesitate to reach out (see Contact bar on my profile) or at noemi[at]edgeryders[dot]eu
\n\nSee you soon in Brussels!
', u'post_id': 5229, u'date': u'2016-02-02 15:34:25'}, {u'user_id': 3074, u'title': u'Hey there !', u'comment_id': 12407, u'content': u'Hello everybody,
\n\nI would like to thank @melancon once again for placing his trust in me, and @Alberto for the warm welcome and the video - it brings me back to my last backpack trip to Sicily in 2010
Working with you on this research project will be my new challenge and I\u2019m very eager to start! I\u2019ll team up with @OlgaIvanovaUB to launch the project and for reporting activities.
\n\nOlga stays your contact person for the establishment of the consortium agreement.
\n\nI\u2019ll be replacing her step by step as your contact person for all administrative and financial matters during the project.\xa0
\n\nWe will get to meet you in Brussels for the kick-off meeting.
\n\nI\u2019m happy to join the OpenCare team and meet you soon!
\n\nLuce
', u'post_id': 5229, u'date': u'2016-01-30 10:02:49'}, {u'user_id': 4, u'title': u'Italians rule the world', u'comment_id': 10961, u'content': u'... and so do MCR fans, apparently. Welcome @LuceChiodelliUB! We only need @Lakomaa\xa0to involve some Italian researcher on the Stockholm side, and then we will have Italians in all OpenCare partners.\xa0
This link is dedicated to Luce: everyone else, open at your risk.\xa0
@lucechiodelliUB has recently join our local Bordeaux team. Together with Olga, she will be your main contact for all admin stuff. Luce has plenty of experience with all EC procedures. I personally was flaggerblasted by the interest she showed in OpenCare during the job interview. Cherry on top, Luce fluently speaks italian and incidentally is (was?) a Modena City Ramblers fan ...
Obviously, she will partner up with Olga on item "How to work together".
\n\nI am sure Luce will take time to say a word about herself soon -- the official start for her is next Friday.
', u'post_id': 5229, u'date': u'2016-01-27 15:33:59'}, {u'user_id': 8, u'title': u'Figuring out how to (avoid) dealing with others :)', u'comment_id': 26593, u'content': u'One of the areas in which I suppose I am failing is human-to-human interaction.\xa0I have my own ideosynchratic way to look at outcomes and I am really only interested in interacting within that context (unless it\'s with people with whom I am close which include several people in Edgeryders).\xa0 Others in the Edgeryders board of directors will testify as to my general impatience with long discussions and consensus based decision-making.\xa0Maybe through the event I could get some insight into how to interact with/relate to others in this kind of open space without having to deal with/ put up with conversations and contexts in which I have no interest. So I can figure out how to live with my failures with minimal impact on others
Like Alex above, I agree there must be something else to these online interactions that make us speak of "community". I\'ve seen it every year since LOTE1 (I\'ve been to and helped organise all of them), and it\'s what fuels the sentiment that I am not failing in my work as someone that is personally vested in all this.
\n\nI need social interaction\xa0as a cure to failing in social interaction (the kind that is on the failing-failure continuum Alex mentions). I increasingly find the offline world intimidating and often\xa0take digital routes to solve\xa0problems that can be solved via a simple phonecall. Talking about this won\'t help, but doing something about it, which is spending time with people, will.\xa0
\n\nOh, and cccording to @KiraVde, by coming I\'ll also be proving I\'m not a hologram\xa0
My expectations for the event couldn't be more open. As a new entrant to the ER community i'm fascinated by the structures and conversations i see around me on the site and i constantly have to force myself to delve further into various parts of the community to discover new aspects of it. The whole experience has been one of engagement, education and enlightenment. There has to be a next step though...
\n\nWithout the face-to-face aspect though it does seem rather... inhuman (i'm a touchy-feely arty sort of person so i crave human interaction to gain understanding)
\n\nI work in the performing arts, both with theatre and poetry, as a performer, producer and manager. Failure is at the core of our philosophy of creation. No-one gets the words right first time, no film or drama springs fully formed into life. We try, we fail, we discuss, we try again. Sometimes, even when we're absolutely certain we've got it right THIS TIME, we fail, or we change our minds and do it differently.
\n\nWe often talk within industry meetings about the 'freedom to fail', the chance for individuals, companies and even major institutions and buildings to take risks, and be able to fail. Yet we remain a very risk-averse community. Failure is freedom.
\n\nI'm very keen to discuss with people the difference between 'failure' (not succeeding at all) and 'failing' (not achieving everything you set out to do) as this is where i often find myself balanced as an individual.
\n\nSaying yes to a crazy conference in Brussels in February full of people i've never met? offering to cook for 100+ people? couch surfing? I think saying 'NO' would have been the true failure.
", u'post_id': 5267, u'date': u'2016-02-09 15:08:28'}, {u'user_id': 4, u'title': u"It's the only way I can think", u'comment_id': 14040, u'content': u"I am a bit impatient with social conventions prescribing us to tiptoe around stuff. If I disagree with someone, I'll just say it rather than beating about the bush. If someone thinks I'm talking bullshit, I am grateful for them to call bullshit on me, rather than politely nodding. Nobody ever learned anything by watching others nod politely. What I'm trying to say is that I cannot think properly unless I am allowed to call a spade a spade, and unless people around me do the same.
\n\nAt most professional conferences and events, there is no incentive to speak the truth. You can glimpse some truth from most people; and you can get the occasional honest talk from a few. But in general everyone is supposed to tell everyone else how amazing they are. This is how the game is played. But this failure stuff is liberating. It creates a context in which the incentive to hustle is greatly reduced. So you get much healthier, better food for the collective thought.
\n\nAt least, that's the theory. We'll soon find out.\xa0
", u'post_id': 5267, u'date': u'2016-02-09 05:26:55'}, {u'user_id': 3027, u'title': u'Undisclosed content ', u'comment_id': 10526, u'content': u'Undisclosed content', u'post_id': 5267, u'date': u'2016-02-06 23:54:31'}, {u'user_id': 4, u'title': u'26th', u'comment_id': 27484, u'content': u'The workshop is on the 26th of February. We have a community fund with some travel support.
', u'post_id': 5281, u'date': u'2016-02-14 11:11:10'}, {u'user_id': 2448, u'title': u'Maybe. When exactly would it be and could ', u'comment_id': 27397, u'content': u'Maybe. When exactly would it be and could travel costs be covered? I would ask my colleagues for interest/availability, possibly could myself go there during LOTE5, especially if it could bring value to other running projects (site development).
\n\nI just saw you also have freifunk as an interest for this. We also have a local group in Witzenhausen and got recently a small fund for providing Freifunk to refugees accommodations.
', u'post_id': 5281, u'date': u'2016-02-13 13:40:09'}, {u'user_id': 4, u'title': u'Can anyone attend? ', u'comment_id': 27189, u'content': u'Nice work, @gandhiano. Can anyone attend the workshop?\xa0\xa0
', u'post_id': 5281, u'date': u'2016-02-13 13:05:18'}, {u'user_id': 2448, u'title': u'Resources pool', u'comment_id': 26595, u'content': u'I have been working in several projects with refugees at the local level. One of the issues emerging was a strong need to was to facilitate the coordination and distribution of resources, which at the moment runs in a very centralized way - through institutions or small, voluntary coordination groups (which usually create a bottleneck).
\n\nWe (Transition Town Witzenhausen, Ecobytes, local Refugees working group and coordination) have started a project to provide a resource pool, where not only institutions working on refugees support, but also the refugees themselves and other individual citizens can use to exchange and connect directly what they need or have to offer.
\n\nThe project has gotten some funding from a German Ministry and resulted in the teilink platform, currently a standard Sharetribe marketplace, which we are self-hosting and plan to further develop/extend in exchange with the institutions on our network during this year (and depending on financial resources we manage to get for it).
', u'post_id': 5281, u'date': u'2016-02-13 12:27:33'}, {u'user_id': 4, u'title': u'Brilliant', u'comment_id': 25041, u'content': u'Ping @Ezio_Manzini\xa0@Yara_Al_Adib.
', u'post_id': 5281, u'date': u'2016-02-13 12:11:01'}, {u'user_id': 1442, u'title': u"yes, it's my collective Serpica Naro organizing the event", u'comment_id': 24085, u'content': u'It\'s a very local event.
\n\nNoor is a refugee, waiting for a permit and he\'s collaborating with us in the Serpica Naro Lab and soon also at Wemake to use industrial sewing machines. Buttons were created with the lasercut here at wemake.
\n\nHe\'s not producing the shirts during the event. He\'s taking measurements and orders. He will then produce the shirts in the next weeks.
\n\nWe can think of involving him during the consortium meeting in Milan
Zoe
', u'post_id': 5281, u'date': u'2016-02-13 10:53:33'}, {u'user_id': 8, u'title': u'Came across another cool project to build on!', u'comment_id': 20644, u'content': u'\n\n@zoescope\xa0you wouldn\'t happen to be involved in this or know about it? I would love to set something like this up in Brussels. For selfish purposes mainly: Tailored is just better and more creative than buying some ready made off the shelf stuff!
', u'post_id': 5281, u'date': u'2016-02-12 20:30:48'}, {u'user_id': 8, u'title': u'thanks, fixed it now', u'comment_id': 17396, u'content': u'<3
', u'post_id': 5281, u'date': u'2016-02-11 13:26:31'}, {u'user_id': 2694, u'title': u"The 'go here to register link'", u'comment_id': 15096, u'content': u'Send me here:\xa0http://support.refugeesemancipation.com/en/
', u'post_id': 5281, u'date': u'2016-02-11 13:24:57'}, {u'user_id': 2201, u'title': u'I work for a\xa0non-profit social enterprise alliance that ', u'comment_id': 13050, u'content': u'I work for a\xa0non-profit social enterprise alliance that employs different strategies aimed at improving the lives and well-being of the thousands of Syrian-Armenians impacted by the ravaging war in Syria. Basically this is a link with the Diaspora Armenians that takes care of fundraising to partially fund the budget for rental subsidies of the refugees in Armenia(together with UNHCR and other donors).
\n\nI\'m the only representative of the platform in Armenia and I multitask(social housing project in Dilijan, independent social workers\' unit in Yerevan, writing blog posts, helping some extremely vulnerable families to integrate, etc) and volunteer as much as I can.\xa0
', u'post_id': 5281, u'date': u'2016-02-11 13:00:23'}, {u'user_id': 4, u'title': u'Read it', u'comment_id': 12822, u'content': u'But it actually says that civil society does this sort of thing: that would be you (and presumably others) "acting as a social worker". What am I missing?
', u'post_id': 5281, u'date': u'2016-02-11 10:39:00'}, {u'user_id': 2201, u'title': u'Done! Well, your example from', u'comment_id': 12347, u'content': u'Done! Well, @Alberto your example from Milan is just great but it is far from what we deal with in Armenia. The society here has lots of local problems and the last thing on their mind is to self-organize and help the newcomers settle. There are the organisations dealing with it but it\'s not effective at all. So yeah, the main issue is to bring awareness to the locals so that they can unite and help the refugees as we can not count on agencies to solve this issue. You can find more info on my event page.
', u'post_id': 5281, u'date': u'2016-02-11 09:57:42'}, {u'user_id': 4, u'title': u'Great! Register here:', u'comment_id': 11108, u'content': u'https://edgeryders.eu/en/lote5/collaborative-inclusion-how-migrants-residents-collaboration-can
\n\nA few words on what\'s going on in Armenia would also be welcome. Please enter them as a comment to the event (same link as the registration). It\'s perfectly OK to enter it simply as a link to some other web page. I imagine a sort of "landing strip": when someone makes it across the border, they are somehow channeled into taking a series of steps towards safety first, and integration later. These steps are not obvious. My analogy is what happens in Milan to Eritrean newcomers: an informal network of people (many of whom Eritrean-Italians) takes newcomers in charge as they take the first baby steps. They need to be picked up at the point of entry (railway or bus stations): telling them "take the Metro Line 2 and get off at Lambrate" is not going to work, even if you have a common language to communicate in, because they do not know how to use public transport. So, people call each other to go pick up complete strangers at 5.00 in the morning, ask friends for spare beds and couches as newcomers take aim for the next step, which in Italy is typically trying to get to Sweden/Germany/wherever. I know this from @Medhin_Paolos, herself part of this network.\xa0
\n\n@Iriedawta\xa0
I\'m in as I said before. Where am I supposed to register on the website\xa0you mentioned @Alberto? I\'m already going on the fb page. Keep me posted.
', u'post_id': 5281, u'date': u'2016-02-11 08:12:19'}, {u'user_id': 1003, u'title': u'WeMake crew - Arriving Feb 24 afternoon - Leaving Feb 28 ', u'comment_id': 33010, u'content': u'Hi all,\xa0
\n\nthe WeMake crew (@zoescope, @cristina, me, Alessandro Contini, @Betty) will arrive in the Feb 24th afternoon so we have some hours to hangout live before the official meeting. \xa0
And we have plenty of time to enjoy Lote5.\xa0
\n\nWe\'ll sleep in an Airbnb near Brussel Midi station pretty close to the venue. ((We\'ll host also Matteo Uguzzoni another Edgeryders from Milano, not yet related to opencare))\xa0
', u'post_id': 5013, u'date': u'2016-01-19 09:53:26'}, {u'user_id': 2464, u'title': u'Arriving on Feb 23 late afternoon - leaving Sun 28', u'comment_id': 32965, u'content': u'Hi all,
\n\nI am preparing my trip to Brussels for the kick-off meeting, and I am considering travelling by train which would actually be so good that I could return on Sunday (instead of Saturday as originally planned).
\n\nAlso, I am considering arriving on Feb 23 (Tuesday) late afternoon. I would like to take advantage of begin "close" to EdgeRyders (as well as all other interested partners/parties) so I can interact with those involved/interested in Task 5.x (ethnographic coding; EdgeSense functionalities). We could also pamper the MoN4 session ahead of time.
\n\nLet me know whether anyone will be available. I plan to stay at the Radisson as suggested by Alberto - if anyone has any better suggestion, please shout it out loud
Good,
\n\nforward the details so we can all take care of our travel and lodging arrangements early enough.
', u'post_id': 5013, u'date': u'2015-11-27 11:04:39'}, {u'user_id': 4, u'title': u'Closed', u'comment_id': 32848, u'content': u'Ok, let it be written in stone. Option 2 it is.\xa0
\n\nThe OpenCare consortium meeting will take place in Brussels in February 2016, and consist of:
\n\nImportant to start in alignment from the get go..
', u'post_id': 5013, u'date': u'2015-11-26 19:30:06'}, {u'user_id': 1003, u'title': u'option 2 ', u'comment_id': 32657, u'content': u'Hi,\xa0
\n\nI prefer option 2 in order to start with the full team in full steam
... is obviously prefarable to me. I will be in Brussels until Sunday.
', u'post_id': 5013, u'date': u'2015-11-26 13:27:20'}, {u'user_id': 2913, u'title': u'Final call', u'comment_id': 32399, u'content': u'Option n 2 (25th-27th) is ok for Comune di Milano!
', u'post_id': 5013, u'date': u'2015-11-26 11:21:44'}, {u'user_id': 4, u'title': u'Final call \u2013 please all consortium partners speak their mind', u'comment_id': 32343, u'content': u'We are almost there.\xa0
\n\nThere are two ways that we can resolve this.\xa0
\n\nIt\'s a very close call between these two, for me. If I have to pick one, I\'d say 2, but my priority is that we all participate as much as possible in all activities to maximize mutual learning.\xa0
', u'post_id': 5013, u'date': u'2015-11-26 10:52:31'}, {u'user_id': 2470, u'title': u'Not possible', u'comment_id': 32280, u'content': u"As I have previously mentioned, it is not possible to change since I'm responsible for a seminar in Stockholm the 24th (scheduled for that date in order for me to be able attend the Brussels conference, which accordng to ER, was to be held March 25-27).\xa0
\n\nIf you think it is appropriate, feel free to hold the OpenCare meeting without me.
", u'post_id': 5013, u'date': u'2015-11-25 14:20:11'}, {u'user_id': 854, u'title': u'I like the final proposal as well.\n\n@costantino, is ', u'comment_id': 32223, u'content': u'I like the final proposal as well.
\n\n@costantino, is there any action that can piggyback this meeting in preparation for the maker-workshop we are postponing? Even something easy, like collecting hacking challenges in a "suggestion box" during the coffee-breaks? I understand LOTE5 will attract a lot of people...
\n\n
Hi guys
\n\nour Agenda seems very rich and inspiring!
\n\nHoping Lakomaa will find a good solution for the date and let us know.
\n\nIn the meanwhile me together with Lucia and Domenico are convinced that the proposed program could work very well:
\n\n\u2022\xa0\xa0 \xa0Wednesday 24th: closed-door consortium meeting
\n\n\u2022\xa0\xa0 \xa0Thursday 25th: LOTE5 begins with a track on failing/unfailing in care. Talks and design workshops go here.
\n\n\u2022\xa0\xa0 \xa0Friday 26th: Master of Networks \u2013 Care Edition
\n\nWe too are so curios to discover MoN, and looking forward to meeting you
\n\nArrivederci!
\n\nHad it been possible I would have done so. Now I have organized activities in Stockholm before the LOTE5-conference in order to make it possible for me to attend the conference.\xa0
\n\nI guess the alternative is to hold the OpenCare meeting at another date.\xa0
', u'post_id': 5013, u'date': u'2015-11-25 11:37:03'}, {u'user_id': 4, u'title': u'Conference != consortium meeting', u'comment_id': 31996, u'content': u'@Lakomaa\xa0and all, your information is correct, but the OpenCare consortium meeting is not to be confused with the LOTE5 conference, which has its own schedule, its own team etc. Our proposal is to integrate our consortium meeting with the conference in order to enhance outreach essentially for free. This is done by weaving the public-facing part of the consortium meeting into the conference. So far, so good.
\n\nThat leaves the "one day of talking", the closed-door part of the consortium meeting. We scheduled it the day before the conference because it makes sense for OpenCare \xa0\u2013 get the consortium on the same page first, then we all go blend with the people who come for LOTE5 (we project 100-200 participants) \u2013 and because the whole Edgeryders team will be running around to keep the show going.\xa0
\n\nSorry for bluntness, but are you sure you cannot reschedule your Feb 24th commitment? This would really help a lot.\xa0
', u'post_id': 5013, u'date': u'2015-11-25 08:47:35'}, {u'user_id': 2470, u'title': u'The schedule', u'comment_id': 31907, u'content': u"I was informed by Nadia that the conference would begin February 25. I have planned accordingly and have other assignments in Stockholm the 24th (and will be arriving in Brussels Wednesdat night). Therefore, I would suggest that we'll hold any consortium meetings February 25-27.
", u'post_id': 5013, u'date': u'2015-11-24 23:07:54'}, {u'user_id': 1003, u'title': u'vote 1.', u'comment_id': 31626, u'content': u"We're super ok to postpone the hardware workshop in a later consortium meeting.
\n\nI'm very excited to learn new things!
\n\nCostantino\xa0
", u'post_id': 5013, u'date': u'2015-11-24 21:26:50'}, {u'user_id': 4, u'title': u'Closing proposal', u'comment_id': 31271, u'content': u'Ok, guys, thanks for the intense debate. Let me try to summarize: I think we are almost there, but there is one final decision to make.
\n\nThe final decision concerns the workshop-shaped stuff. At the moment we have three things:
\n\nAgain, it seems we have one thing too many. In principle we could do Manzini and WeMake on Thursday and MON on Friday, but that would not leave a lot of breathing space to the talks. So, we can do two things:
\n\nI would\xa0not\xa0pospone (a) the talks and (b) Ezio\'s workshop, because they are both channel of outreach and onboarding.\xa0
\n\nWhat do you guys think? @melancon\xa0@zoescope\xa0@seble\xa0@Luciascopelliti\xa0@Lakomaa\xa0@Noemi\xa0@markomanka\xa0@simonaferlini\xa0@MassimoMercuri
', u'post_id': 5013, u'date': u'2015-11-24 19:10:00'}, {u'user_id': 2913, u'title': u'Welfare di tutti', u'comment_id': 31013, u'content': u'Hi Guy
\n\nI\'m not sure we can provide useful data for the MoN4 (the kind of data that you mentioned). Sorry for this, probably later...
\n\nAnyway we\'ll talk about it with Seble and colleagues in the Dept. of Social Policy.
\n\nIn the next weeks they should launch the new platform of the project Welfare di tutti, that should work also as a collector of conversations among participants.
\n\nFor sure we\'ll bring in Brussels some informations and updates on the running project "Welfare di tutti" and its potential synergies with Opencare.
\n\nRossana
', u'post_id': 5013, u'date': u'2016-02-04 11:26:10'}, {u'user_id': 2464, u'title': u'Any data available?', u'comment_id': 30950, u'content': u'\n\nI had not noticed this post among the long discussion about the organization of the kick-off.
\n\nDoes Milano have any data we could use to investigate how the Welfare di tutti initiative is doing? Any conversations among participants, any traces of activities related to this initiative?
\n\nWould be great to use this as an ingredient for the MoN4 workshop. There is still time to include this to the workshop.
\n\nGuy
', u'post_id': 5013, u'date': u'2016-02-03 10:41:57'}, {u'user_id': 2978, u'title': u'Undisclosed content ', u'comment_id': 30771, u'content': u'Undisclosed content', u'post_id': 5013, u'date': u'2015-11-24 12:12:54'}, {u'user_id': 1442, u'title': u'Alliance', u'comment_id': 30173, u'content': u'@alberto we have special kits plug and play to fast prototype with Arduino, sensors and actuators that\'s why it would not be necessary to ask for equipment. for sure It would be nice to involve them for networking on opencare!
', u'post_id': 5013, u'date': u'2015-11-20 10:50:23'}, {u'user_id': 854, u'title': u'I could suggest...', u'comment_id': 29856, u'content': u'Hi @noemi, all
\n\nI could suggest a lecture about the weird ways from fundamental research to "innovation" from a researcher here in ATLAS/CERN from the University of Geneva? He is doing R&D in medical technologies, but the story (I believe) is more interesting for us than the subject of research itself...
\n\nHow would you feel about it?
', u'post_id': 5013, u'date': u'2015-11-23 13:42:37'}, {u'user_id': 854, u'title': u'Great...', u'comment_id': 29823, u'content': u'...I will take care of this on Friday. Thank you for pointing the resources out for me.
', u'post_id': 5013, u'date': u'2015-11-25 14:11:31'}, {u'user_id': 3, u'title': u'Your call!', u'comment_id': 29806, u'content': u'@markomanka\xa0so it would seem you will need around an hour, Q&A included. But it will be really your call. I suggest once you have decided on a title and a couple paragraphs to describe your session you upload it as a proposal to the program. Here are all the instructions and questions to help you refine it. Of course you\'ll always be able to change it, but it gives people an introduction and a way to talk to you prior to Brussels because we\'ll be circulating the link. You can also post or link to resource and readings so we come better prepared.
', u'post_id': 5013, u'date': u'2015-11-23 13:50:11'}, {u'user_id': 854, u'title': u'I could just...', u'comment_id': 29766, u'content': u'I could just present a simple introduction to the principles of medicine, contrasting them with the everyday experience of medical practices as they are commonly seen... This could serve the purpose of discussing failures, AND of highlighting our yet poor framing of what we do, at once.
\n\nThe number of arguments touched may vary quite a bit, but let\'s say that starting from being allowed 30 minutes of lecture on, I believe it could start piecing together for the audience. It would be nice to have some time immediately after the lecture buffered for questions, allowing also for relaxed interruptions during the lecture. I usually get the feeling that asking people to wait for other lectures to conclude before asking questions let\'s their curiosity drain away...
\n\nI should be comfortable with people interacting with me in quite a few languages (English of course, Italian of course, French, Spanish, Portuguese, and I could even venture accepting questions in Dutch although quite uncomfortably =P...) but I am only able to reply fluently and timely in English and Italian ...this should be communicated to those attending... or we should identify some volunteer (informal) interpreters
All, great to see enthusiasm jumping through the roof. Like @Melancon, @zoescope and the rest I too am curious to dip my feet into as many and diverse talks and workshops. A lot of us in OpenCare don\'t know each other\'s work except in "keywords", and the more we can learn the more useful for the different takes on care to make sense taken together, which is why we have a consortium in the first place.
\n\nI\'d like to propose a small adjustment: it seems there\'s agreement for Day 1 to be meeting-style. Given that Day2, the 25th is the launch day for Living on the Edge conference, we have to consider a broader audience making contact for the first time. It would be great to use it as OpenCare context setting and public launch: an overview on care fails rather than data. I suggest planning Manzini\'s, Lucia\'s, Marko\'s and other talks+ maker workshops from the team here, and leave MoN for 26th, when it can run in parallel with other Lote sessions.\xa0
\n\n@markomanka\xa0the easiest to manage is if you let us know how much time you would need at a minimum, rather than the other way around. If you know that you are giving a talk on the day of OpenCare official public launch in front of a v mixed audience, what picture would you like to paint the most?
', u'post_id': 5013, u'date': u'2015-11-20 12:38:08'}, {u'user_id': 4, u'title': u'Sequential == good', u'comment_id': 29354, u'content': u'We have a fundamental tradeoff. On the one hand, we can reach the maximum amount of people by doing several things in parallel: data geeks might like MoN better, whereas designers will flock to Ezio etc. But on the other hand, we need to learn from each other and share tools, and we cannot do that if, say, Marco is talking about healthonomics in one room at the same time that Zoe is hacking devices in another room.\xa0
\n\nI recommend prioritising mutual learning over engagement. Doing things in sequence, which is normally inefficient, in this case is good (we will probably increase work in parallel as the project progresses). So, two possibilities:
\n\n, so this may actually be doable.The third alternative, that of doing a two-day MoN but nothing else, I do not really like. I love networks, but I do not think non-geeks need some extra love at this stage. Do you agree, @Noemi?\xa0
\n\n@markomanka\xa0and @MassimoMercuri: whatever you guys do (Lego is excellent, BTW! Who does not like Lego?) will be pushed out as part of the LOTE5 event. It comes down to: we can negotiate with the LOTE5 team the time and facilities needed for each session.
\n\n@zoescope: do you want us to look into an alliance with the Brussels makers? This seems like an easy win: equipment is there\xa0and\xa0we have more makers coming into contact with the Belgian makers. Perhaps you know some already \u2013 and we do know @Thomas_Goorden.\xa0
', u'post_id': 5013, u'date': u'2015-11-19 18:42:28'}, {u'user_id': 2524, u'title': u'my2cents', u'comment_id': 28203, u'content': u'hi
\n\nI like the 3 days structure, day1 closed door, day2 MoN, day3 Ezio Manzini ws + our contributions.
\n\nI\'m not sure about dedicating 2 days to MoN but, even if I watched the video, I\'ve never experiences something similar. I definitely wouldn\'t miss Manzini ws on designing community driven care services!
\n\nI can bring \xa0with pleasure\xa0(afternoon day3 if I understood well)\xa0the point of "welfare in the city" and the challenging that the public system is facing!\xa0
', u'post_id': 5013, u'date': u'2015-11-19 17:39:00'}, {u'user_id': 4, u'title': u'Move the debate', u'comment_id': 27623, u'content': u'@markomanka, @melancon\xa0and anyone else interested: let\'s move the debate on MoN to a different thread. This one has become long, messy and difficult to search.\xa0
', u'post_id': 5013, u'date': u'2015-12-01 08:45:01'}, {u'user_id': 854, u'title': u'yes...', u'comment_id': 27622, u'content': u"...I am just unsure how would we interprete the possible analyses, being unable to access the hidden confounders acting on them...
\n\n...should we maybe think of a bootstrapping pipeline, testing several (realistic?) weightings/architectures of confounders, to get a distribution of trustworthiness of the models (and their interpretations)?
\n\nJust running one analysis on the data doesn't seem to me any better than just formulating an informed prejudice... maybe different, but not better.
", u'post_id': 5013, u'date': u'2015-11-27 12:17:16'}, {u'user_id': 4, u'title': u'Non-network', u'comment_id': 27621, u'content': u'If you re-read my comment above, @markomanka, you will see that data on pageviews are non-network (item 1). Data on patterns of linking across entries (2) and collaboration on different entries (3) naturally induce networks.\xa0
', u'post_id': 5013, u'date': u'2015-11-26 10:01:50'}, {u'user_id': 854, u'title': u'What I am not sure of...', u'comment_id': 27620, u'content': u'What I am not sure of is the following: since the traffic is only saved as aggregated data (as in "number of page visualisations") rather than in detailed form (as in "the same anonymous user has visited the following pages in sequence"), how do we build a meaningful network being blinded to their co-occurrence?
\n\n...so we have, on one side the visualisation load, and on the other the content relatedness... the latter being a bit less an expression of crowd intelligence than search co-occurrences would be, since the entries in wikipedia (and the edits) tend to be subdued to references...
', u'post_id': 5013, u'date': u'2015-11-25 14:10:04'}, {u'user_id': 4, u'title': u'Statistics are easy', u'comment_id': 27618, u'content': u'Page view stats are easy. Wikipedia maintains hourly dumps of all page views stats (documentation).\xa0
\n\nThe difficult part is disentangling the pages about care from the pages about everything else. This cannot be done directly (it is not a field of the dataset); it has to be done by association. There are two ways to do that:
\n\nThere are at least three interesting questions concerning OpenCare that you could address by looking at Wikipedia data:
\n\nThere are many visualizations to look up for inspiration.\xa0
\n\nAny of this is to your liking, @melancon, @markomanka\xa0and all?
', u'post_id': 5013, u'date': u'2015-11-23 16:16:31'}, {u'user_id': 854, u'title': u'OK there...', u'comment_id': 27605, u'content': u'So we both agree wikipedia is shaky ground... I will try to contact somebody at the Wikimedia Foundation to ask them whether the data could even be collected in the form we might need, but not for the LOTE5 deadline.
\n\nI will try to think of something about the OECD exercise instead, to contribute to the "brainstorming"
Marco
', u'post_id': 5013, u'date': u'2015-11-23 13:48:57'}, {u'user_id': 2464, u'title': u'Good point', u'comment_id': 27596, u'content': u'You are absolutely right, and a bit wrong
The value of visualization strongly depends on the motivation one has to explore the data. Dozens of different visualization can be built form the same dataset.
\n\nWHat I am suggesting is not to undertake a quest for question on the occasion of the workshop, but to have them beforehand so I can prepare a "show" that would demonstrate the arsenal, based on real and convincing motivations.
\n\nI also had a look at what could be done using the wikipedia pages, as suggested by Alberto. I am still unsure about the feasibility (putting our hands on usage statitics could be quite difficult).
\n\nSo, I am still interested in hearing people about how the oecd data could be useful for OpenCare.
', u'post_id': 5013, u'date': u'2015-11-23 10:41:57'}, {u'user_id': 854, u'title': u'I see your point...', u'comment_id': 27579, u'content': u'I see your point @melancon, but let me get this straight: are we still planning to give a demonstration of the techniques arsenal, or are we aiming at answering actually meaningful questions?
\n\nI am afraid if we embark in the second, not only will it take a bit more to figure out what to ask, but the MoN will fall back to the initial condition of requiring at least a couple of days to produce anything better than a shabby collection of conflicting-half-thought visualisations (Hans is not just good because of the questions)...
\n\nOr am I overestimating the task?
', u'post_id': 5013, u'date': u'2015-11-23 10:16:38'}, {u'user_id': 854, u'title': u'The kind of data...', u'comment_id': 27481, u'content': u'The kind of data we would need for that kind of analyses does not seem to be usually available through wikipedia/wikimedia statistics (see ->\xa0https://en.wikipedia.org/wiki/Wikipedia:Statistics AND\xa0http://stackoverflow.com/questions/5323589/how-to-use-wikipedia-api-to-get-the-page-view-statistics-of-a-particular-page-in).
\n\nIn facts, while I was trying to figure out what they could share with us, I haven\'t been able to find any documentation of how they would store less-than-anonymised-and-aggregated data about traffic...
', u'post_id': 5013, u'date': u'2015-11-23 10:12:07'}, {u'user_id': 4, u'title': u'Questions', u'comment_id': 27392, u'content': u'We have been thinking about Wikipedia pageviews as an indicator of (partial) disintermediation in diagnosis; people look up pages on medical condition to make sense of the symptoms they feel.\xa0
\n\nA network science version of this would be to:
\n\nI had a quick look at the data, I could download datasets from the OECD, I saw there a tons of data on the WB portal, I have some ideas what GapMinder offers.
\n\nThe essential ingredient I need to be able to build an interesting and useful demo is "questions". What type of information/knowledge may we expect to get out of these datasets? We could "replay" things similar to GapMinder, but then how better would that be than simply listening to Rosling\'s videos (and he is a heck of a speaker)?
\n\nHow can these datasets be used to reveal something useful for OpenCare?
', u'post_id': 5013, u'date': u'2015-11-21 08:12:04'}, {u'user_id': 854, u'title': u'Here I am...', u'comment_id': 26580, u'content': u'Thank you @Alberto for putting this together.
\n\nI would agree with @melancon: let\'s keep the MoN to a demo/introduction for future activities. Could data sources like the following be useful for the demos?
\n\nhttp://www.oecd.org/social/expenditure.htm
\n\nhttp://data.worldbank.org/topic/health
\n\nhttp://www.gapminder.org/data/
\n\nConcerning my lecture, there is a lot we may want to discuss: from the incentives you mention, to the warped ways we account for the costs... The role of informal care, and the exorbitant overheads of bureaucracy in institutional care...
\n\nBut let me ask, before I promise anything: How much time would you plan on dedicating to each lecture? Shouldn\'t we somewhat align the topics to the day we insert the lectures in (as inspiration for MoN, or for the design\xa0hackaton)?
\n\nListening on this channel now
I\'d be delighted to have a hands-on workshop,
\n\nI understand we need to find a viable compromise and share time between all activities. But I personally would benefit from getting involved with what you guys do. Because "doing things" is at the center of OpenCare, I am ready to compress the MoN part and mayeb keep it to a introductory activity to future MoNs ...
\n\n???
', u'post_id': 5013, u'date': u'2015-11-19 16:54:29'}, {u'user_id': 1442, u'title': u'Smart objects with Arduino?', u'comment_id': 23692, u'content': u'Hi all,
\n\nnice plan!
\n\nWeMake \xa0can contribute with a talk to present some interesting projects \xa0and approaches around the topics of care and makers culture.
\n\nAs the plan is already pretty interesting, do you think there will be time to have an additional hands-on activity? (minimum 4 hours for an introduction on a technology and its potential - or 8-10 hours if we want to try and prototype something).\xa0
\n\nIf there is time, the easiest thing (without having the machines of a fablab) would be to bring to Brussels \xa010 Arduino kits we usually use for our workshops on which 20/25 people from different backgrounds could be activated in understanding what does it mean to work on smart objects.
\n\nbest
\n\nZoe\xa0
', u'post_id': 5013, u'date': u'2015-11-19 16:17:10'}, {u'user_id': 2464, u'title': u'Masters of Networks 4 -- is one day enough?', u'comment_id': 20085, u'content': u'Wow, thanks for putting that great and stimulating video -- and I am not saying that because I appear on the screen. I think it is a good way to publicize the event and attrack more people.
\n\nMy experience is that MoN need at least two days to produce anything juicy. The first day is usually dedicated to handle data, trigger and massage ideas, the second day is often useful to take a distance, have a second look at the available visualizations (often made late at night after dinner ...).
\n\nWe usually work around network data provided by domain experts, together with questions they have around their communities (part of the game is to properly spell out these quesitons).
\n\nWe could also try to put our hands on welfare data -- would that be available through national opendata portals, for instance? We can work network data and any other kind of data, and hopefully mix them.
\n\nSo my question/proposal is to have MoN spread over Feb 25 ad Feb 26. That being said, it may be possible to squeeze things into 1 1/2 day to keep everything within 3 full days ?
', u'post_id': 5013, u'date': u'2015-11-19 15:41:10'}, {u'user_id': 4, u'title': u'Milano too', u'comment_id': 7449, u'content': u'Also ping @Luciascopelliti, who could bring the point of view of precisely\xa0how\xa0welfare is failing in the city, and what people are doing to fix the failure.\xa0
', u'post_id': 5013, u'date': u'2015-11-19 15:11:17'}, {u'user_id': 137, u'title': u'Hey @Nadia and Thomas, sure, looks good. I ', u'comment_id': 29518, u'content': u'Hey @Nadia and Thomas, sure, looks good. I need access to the subscriptions to the workshop (I guess Nadia or @Noemi has it?) so I can start contacting people. I will pick some stories from the platform, some of the future makers and maybe the posts from the stewardship voyage. I think these were very good.\xa0
\n\nAbout the number, I will do my best to deliver 5 - but this will depend on the number of participants who do something about health care. Let\'s say I deliver at least 1/2 of the number of participants dealing with health care, so for 6 people at least 3 stories, and so on. Works?
', u'post_id': 5220, u'date': u'2016-01-28 10:57:56'}, {u'user_id': 119, u'title': u'Yup, sounds good! (with additions)', u'comment_id': 28714, u'content': u'What I would add.
\n\nImportant: Every story/project will go home with at least one diagram or chart as well. In a certain way, I think this will prove more interesting/relevant than the picture. If we can scan it on the spot, that might be good/interesting.
\n\nFor the storytellers/documentalists, as I mentioned to @Nadia, this should fit in very naturally with the format. There should be plenty of clear "insight" moments, which we definitely need to capture (primarily in writing, although it might sometimes be suitable for another format/medium as well).
\n\nAs far as reference material is concerned, the "confessional booth" really is a new idea, but I can look around. I guess it would look somewhat like the better Youtube "webcam confessionals".
', u'post_id': 5220, u'date': u'2016-01-27 20:59:06'}, {u'user_id': 8, u'title': u'Ok rounding off - confirm if I you agree?', u'comment_id': 28429, u'content': u'Selection of projects/people: Everyone is welcome to participate with their own projects, but we will be focusing video production/writing support on people working on projects or problems related to OpenCare.
\n\nArtefacts:\xa0 for each selected project we will support participants to produce :1 high resolution photo + 1 written story + 1 Short Video.
\n\nRoles and responsibilities:
\n\n1) @Thomas_Goorden: Responsible for recruitment of Belgian participants, driving the workshop and delivery of videos. Suggested process: The one you posted above, ensuring there is sufficient time slotted for the hands on production of video and accommodation of Natalia\'s requirements for ability to delivery written pieces. Reference materials: Can you point to example video material that you think is great storytelling so people know what to aim for/expect? Can we agree on a minimum number of videos?
\n\n2)\xa0@Natalia_Skoczylas: Responsible for delivery of written stories. Suggested process: contact people who register for the workshop through the form, ask them some questions to help learn more about what they are doing ahead of the event. With the aim of identifying people who may have\xa0a few good stories relevant to the OpenCare initiative, and focus your efforts during the workshop into on developing those onto great articles for publishing on edgeryders.eu. \xa0Reference materials: Can you point to example articles which you think are great storytelling so people know what to aim for/expect? Can we agree on a minimum number of articles?
\n\n3) @Nadia: Manning the confessional booth. Thomas can you help me set up sharp audio/lighting?
\n\n4) Storytellers: Part of this work can probably be put under the "documentation and storytelling" tasks. Last year we had a serious onboarding session for the documentation team the day before the event started. We also made sure to include documentation instructions in the booklet with program, participants directory etc that handed out on registration. S
\n\nEquipment:\xa0We need\xa0DSLR cameras\xa0and laptops for this session. So we need to make a call for participants to bring this with them, doable\xa0@Noemi? Maybe SmartBe has some cameras and mics available\xa0@ireinga?
\n\nConfessional booth: I think this is a nice idea for everyone at LOTE actually. Maybe we could put it at the registration desk as something people do on arrival during my opening session (talk to me bubble exercise)?\xa0
', u'post_id': 5220, u'date': u'2016-01-27 17:28:00'}, {u'user_id': 3, u'title': u'Some quick thoughts..', u'comment_id': 27303, u'content': u'\n\nre: duration. For how long and what you decide to do with the group as a facilitator is up to you - so sure, go for 10:00 - 18:00. Hey, I suggested a 3 hour workshop, so what do I know. Who does the work calls the shots.. People should probably have lunch, although if you look at the program Sunday is free for us to decide when and where. Maybe we cook, maybe we order in, but yes, we\'ll have lunch.
\n\nre: 30-40 mins per project: this gets solved by saying "we aim to have minimum x number of good stories at the end of the day. first come, first served. register your story here and we\'ll get back to you" or something. After all, you ask people to sign up as story or storyteller, so you will know ahead how many stories you have and can manage expectations no?
\n\nno. of people: again, I think it solves in the description of the workshop. Given that this workshop happens in parallel to other sessions, I don\'t think you\'ll have too many.\xa0
\n\nFinally, can you take us through what you need and from whom\xa0tomorrow in the community call at 11 am cet? if not, let me know how I can help? Is all the info in this wiki or should we do a sprint and update it fully? How do we roll with getting participants on board, anything you need? on the top of my head: a number of tweet-like creative calls for registration + maybe graphics + maybe a snapshot of you on camera as a sneak peek?\xa0
', u'post_id': 5220, u'date': u'2016-01-26 17:45:42'}, {u'user_id': 119, u'title': u'Open questions', u'comment_id': 26908, u'content': u'OK, so there are a few things I could use some feedback/opinions on, if anyone is up for it.
\n\nMy main concerns have to do with timing:
\n\n9:00 to 19:00 is a really long day. So, I would suggest trimming it to 10:00-18:00 (hey, it\'s Sunday!). Secondly, we probably need to add lunch. Is there a plan for that already? Thirdly, I would suggest adding in a walk during the day. There is a way to actually continue the workshop while walking, which is both healthy and fun. Is there a nice itinerary we could think of? (Max 1 hour, so about 3-4km.)
\n\nWhile 30-45 minutes is probably good for tackling a project, it can get a bit unpredictable (in both directions: not having enough time to finish or finishing early). Personally, I strongly prefer a "natural flow", where we move things forward as fast as comfortable, but without artificial cut-off points. The only way to do this is to have participants agree that their project might not end up getting discussed and do a little exercise early on to determine in what sequence we will tackle the stories/projects. I think if this is communicated early on, it won\'t be a problem. Also keep in mind that everyone is pretty busy all the time, so it\'s not like you have to wait for your turn. What do you think?
\n\nThe last issue has to do with number of participants. Again, I prefer a naturalistic approach: whoever comes is the right people. I can do the intro/explanation for a fairly large group if necessary and I\'m suspecting Edgeryders attracts a lot of people with experience in similar techniques that will easily pick up on my cues. The one thing that complicates things is AV equipment: we do need more DSLR- and videocameras if more people come. Thoughts?
', u'post_id': 5220, u'date': u'2016-01-26 11:10:53'}, {u'user_id': 119, u'title': u'Artefacts', u'comment_id': 24725, u'content': u'Good questions @Noemi!
\n\nSo yes, I\'ve done it before, but more in the "original" form, which was based a lot more on improvisation techniques (essentially acting out certain scenes). I did experiment with e.g. diagramming and that worked really well. Overall, it is still experimental, so not many references online about "hyperactive listening" itself except the manual that Joe Edelman wrote. But essentially, I\'m not following that, I\'m completely remixing stuff, while retaining the core concept which is having one person/project/problem* at the centre and throwing a group + techniques at it.
\n\nThere is some research that could be done:\xa0One would be to collect different sorts of diagrams that might be applicable (e.g. "business model canvas", "SWAT analysis", "generic mindmap", etc etc).\xa0Another, very similar, task would be to collect text samples of different types that are used to describe projects/people.\xa0We could hang these up for reference and to give people ideas of what they could produce.
\n\n*: I like this. The 3 P\'s of Hyperactive Listening, Person Project Problem.
', u'post_id': 5220, u'date': u'2016-01-26 10:10:49'}, {u'user_id': 3, u'title': u'thanks!', u'comment_id': 24663, u'content': u'I would join as a storyteller, but I don\'t trust myself to be a reliable source since I joined every session proposed so far. I do want to help prepare it, so I added to your wiki the outputs - better said, artifacts people can leave with after the session. Did you do this before @Thomas_Goorden? If there are references on the web to what came out of sessions like these it would be great.
\n\nI admit I\'m most excited by the videos! (an edgeryders collection for reference\xa0here).
', u'post_id': 5220, u'date': u'2016-01-25 22:41:21'}, {u'user_id': 8, u'title': u'The venue is HUGE', u'comment_id': 23062, u'content': u'My hesitation: people show up late by 3 mins and you get a lot of back and forth on mobile phones: "where are you guys?" "what? what? I can\'t hear you...uh rue du whaa?" etc But the venue itself is large enough that we can do a lot of moving around with minimal complexity if we have good signage. Up for helping with this?
I'd like to express strong support for the proposed walking methodology. Even if weather is poor.
\n\nI know there's this widespread idea that we need to tether people to laptops and optimally do...something. But I suspect that to be a failure mode in itself.
\n\nThat and I like walks.
", u'post_id': 5220, u'date': u'2016-01-27 18:09:19'}, {u'user_id': 8, u'title': u'Because collective intelligence', u'comment_id': 23060, u'content': u'As a designer/art director used to running things according to the concept I imagine from start to end, it\'s quite challenging having others poking into "my" work. I often find the "discussions" annoying when I just want to get on with something, and this is coming from someone who has been part of this since the beginning :))
\n\nIt can feel like wearing your skin on the outside. But this is a key part of Edgeryders: honest feedback, poking holes into, and building on one another\'s approaches. These exchanges are a big part of what makes everyone in the space learn together.
', u'post_id': 5220, u'date': u'2016-01-27 15:20:00'}, {u'user_id': 119, u'title': u'Huh.', u'comment_id': 23059, u'content': u'I\'m not even sure why I feel like I have to defend my suggestions. I\'m quite confident in the methodologies and just know from experience that letting people stretch their legs is a good idea and know that a "guided walking conversation" (the method is a bit more involved, but that\'s basically what it is) fits incredibly well with the techniques I\'ve suggested so far.\xa0Granted, it\'s hard to explain, so probably impossible to imagine, as most of this stuff is so experientally based. Therefor, I would very much prefer is we can keep this conversation for it\'s original purpose (allowing people to step in and help and fine-tuning the text), rather than a lengthy round of impossible to "solve" feedback.
\n\nIt\'s a long day and that tells me we need some variation. Otherwise we risk having people do 6 x 1h rounds of the same methodology, which I don\'t think will be so interesting and the later rounds will suffer for it.
\n\nOh, Natalia, if you don\'t mind, I prefer to go by "Thomas".
', u'post_id': 5220, u'date': u'2016-01-27 14:36:03'}, {u'user_id': 137, u'title': u"let's think about it, but I am also ", u'comment_id': 23058, u'content': u"let's think about it, but I am also afraid this adds too much - and it is already quite a crazy workshop, with a relatively new concept, potential of creating tons of stories, and if we really want everyone to get a chance to be listened to and actually produce something, even in these long 8 hours, in fact, we do not have that much time. I trust your experience, Tom, as a trainer, but we also want to make sure we actually do have high-quality results, if not ready, at least, ready to an extent that will not let people just abandon their idea - but with some help will lead to publishing them.\xa0
\n\nI will be in Brussels from 23rd of February and I am up for meeting and discussing it beforehand, anyway:)
", u'post_id': 5220, u'date': u'2016-01-27 13:38:22'}, {u'user_id': 8, u'title': u'Not at all convinced about the walk', u'comment_id': 23057, u'content': u'I would keep it in the venue as much as possible. More complexity = more things that can go wrong.
', u'post_id': 5220, u'date': u'2016-01-27 13:29:08'}, {u'user_id': 119, u'title': u'Hmmm', u'comment_id': 23056, u'content': u'OK, so the walk is actually a methodology in itself. I\'ve done it plenty of times before and we don\'t need a caf\xe9, laptops or anything to do it. Usually people enjoy it even if there is a bit of (light) rain. If it gets really bad, ok, but it hardly ever happens that it rains continuously the whole day, even in Brussels
So, I would really like it if we can think of a nice, short(ish) itinerary. If possible it would be nice to go through a park, but it\'s not required.
\n\nAs for your second question: every group needs one "story" and multiple "storytellers" (about 4 to 6 is ideal). However, we won\'t work the whole day on one story, so people will shift their role from story to storyteller. So, in the case of you example (20 people), we\'d have 3 to 4 groups all the time and if we rotate every hour or so, I think in the end almost everyone can have "their" story discussed (3 groups x 6 iterations = 18 stories).
', u'post_id': 5220, u'date': u'2016-01-27 12:26:55'}, {u'user_id': 137, u'title': u"About the walk, it's tricky and let's decide ", u'comment_id': 23054, u'content': u"About the walk, it's tricky and let's decide the day before - if the weather sucks, which is not unlikely in Brussels, no point to add it. We can move to a nice caffee in the neighbourhood, but in my opinion this will mostly distract people. What we made sure about in the last workshop is that people have everything they need available (laptops, food, coffee, tables, sun, cables, nice people who help them with fleshing out the ideas) in the spot - so that they can really devote this time to thinking and writing. I am not sure if you agree and maybe it sounds even a bit extreme, but it worked for us.\xa0
\n\nSecond thing - let's imagine we have 20 people coming - 10 with stories and 10 as storytellers. Do you match a story with a storyteller or want the whole group to discuss each project?\xa0
", u'post_id': 5220, u'date': u'2016-01-27 11:38:37'}, {u'user_id': 8, u'title': u'Use me', u'comment_id': 23025, u'content': u' I\'ll be around all day, but my role is to help you guys. So just boss me around/let me know what you need and I\'ll help.
Hey @Thomas_Goorden, perfect, this exactly suits my mission - I was asked to integrate elements of a workshop that we conducted in Nepal some months ago, where the outcome was written stories - and to replicate this idea in that particular workshop. I will be searching for a few good stories related to health care and what I will do is discussing with people with different related stories, helping them ask questions, answer, see different angles of their stories and finally put it all into words and publish on this very platform. A diversity of outcomes is even better - if we have videos, photo collages, or drawings published here as well, this would make a beautiful interesting result.\xa0
\n\nwe need to decide how the confession booth will work - I don\'t think we need a dedicated person there, rather both of us (or whoever else will help us lead this workshop). So we tell the people there is this thing as well, and if they feel like having answers recorded, please come and ask one of us, and we will help.\xa0
', u'post_id': 5220, u'date': u'2016-01-27 11:21:28'}, {u'user_id': 8, u'title': u'Why email sucks', u'comment_id': 22458, u'content': u'Hi @Thomas_Goorden\xa0and @Natalia_Skoczylas:
\n\n', u'post_id': 5220, u'date': u'2016-01-26 10:00:27'}, {u'user_id': 119, u'title': u'Possibilities', u'comment_id': 21661, u'content': u'Hello @Natalia_Skoczylas, so this is what I was trying to hint at. The organising team asked me to pick up this session and so I proposed this, not quite aware of any other initiatives or expectations. However, if you are up for it, I could definitely use help!
\n\nHelping out as a storyteller seems like an easy way to join. If you want to add a bit more to the package, I think the main concern is to have as many usable artefacts (text, video, etc) at the end of the ride. I could definitely use help in encouraging people to write down/record good ideas, as well as helping to collect them.
\n\nIn particular, we might need someone to semi-permanently man the "confessional booth", which would essentially be a static video recording setup where they can record a "confession" video about their project. I\'m thinking of having someone there with a list of questions to ask in more or less a ritualised way. (The list of questions+ritual is part of the prep-work that still needs to be done.)
\n\nMost of the supporting work is precisely that: supply prompts and somehow capture the results.
\n\nAs for the warm-up/in-between exercise, it might be a good idea to try it out a bit more before LOTE5, so I might want to bring together a group of people in Brussels in the coming weeks...
', u'post_id': 5220, u'date': u'2016-01-26 09:52:07'}, {u'user_id': 137, u'title': u'Hey @Thomas_Goorden, as I am expected to co-facilitate ', u'comment_id': 21454, u'content': u'Hey @Thomas_Goorden, as I am expected to co-facilitate this with you, and the outcome of my session is to get some stories written and published on the platform (related to health care), and as it looks like quite a developed session idea, where do I fit in? I imagine I could work with the stories and help people write down and organise their projects/concepts around the topic, and work as a .. storyteller for them, right?\xa0
', u'post_id': 5220, u'date': u'2016-01-25 13:52:58'}, {u'user_id': 2330, u'title': u'Undisclosed content ', u'comment_id': 19411, u'content': u'Undisclosed content', u'post_id': 5220, u'date': u'2016-01-26 08:57:24'}, {u'user_id': 119, u'title': u'Of course!', u'comment_id': 18041, u'content': u'Oh @KiraVde, you never cease to amaze me\xa0
I\'m pretty sure anybody who feel they need it, is the perfect candidate. I think\xa0@Nadia\xa0wants to see enough projects that have something to do with "care", but I\'m not sure if I need to be screening for that.
\n\nAs for the identity question: what I want to - sneakily - do, is something based on "Enlightenment Intensive". You can find it on Wikipedia, an entirely too elaborate handbook can be found here. Note that I\'ll be heavily butchering the original technique, the point is that I think it could produce some interesting insights quite quickly. I\'d definitely be up for trying it out, however I do think it\'s important to have a small group to be able to rotate the "dyads". The things I want to mess with are the koans themselves (I\'m thinking of a card deck to manipulate frequency and focusing on specific storytelling-oriented koans) and the timing (it\'s currently locked at 5 minutes, but I suspect a more "natural" flow is possible).
\n\nAnyhow... If we can get a little gang together, we could try this? (Half a day, about 8-10 ppl, somewhere in Brussels? Send out invites to ppl we think would be up for this?)
', u'post_id': 5220, u'date': u'2016-01-25 15:45:05'}, {u'user_id': 2694, u'title': u'I NEED THIS', u'comment_id': 16629, u'content': u'Better said, we need this, I think.\xa0@ireinga\xa0can we propose antiheroes as a story?
\n\nThomas in case you\'d like to practice in advance, I got the time and the urgent desire for a better sense of identity.
', u'post_id': 5220, u'date': u'2016-01-25 11:12:35'}, {u'user_id': 119, u'title': u'There you go', u'comment_id': 10195, u'content': u'Hi\xa0@Nadia, @KiraVde, @Noemi, @Natalia_Skoczylas,@Irene\xa0and @SamMuirhead. As discussed via email, I\'m hereby shifting the conversation to this wiki page.
', u'post_id': 5220, u'date': u'2016-01-25 11:05:33'}, {u'user_id': 2694, u'title': u'Molenbeek :)', u'comment_id': 23819, u'content': u'Mollenbeek would translate into stream full of moles.
\n\nOtherwise very nice summary Nadia, thank you.
', u'post_id': 5056, u'date': u'2015-12-09 10:29:25'}, {u'user_id': 2201, u'title': u"So what I've done so far, is updating ", u'comment_id': 23307, u'content': u'So what I\'ve done so far, is updating my profile info on the platform as well as CS. Next thing I\'ll do is composing the perfect text that I would personalize and start sending to CSers in Brussels. Question: CSers like to know who exactly they host, so I can\'t be vague about this. I\'d need to know exactly who is willing to Couchsurf during the event, number of days they want to stay in Brussels, etc.\xa0Do you think I should start sending out the requests without waiting for the participants\' database?
\n\nJust added myself to the travels and accommodation team. I am up to take care of accommodation mostly but can help @Irene\xa0with travels too(maybe non EU participants as I have experience with that?). I think we can have a general form for everyone and then the ones who need help/support with visas, etc they can contact us and we send them the special form with the personal details? What do you think?
', u'post_id': 5056, u'date': u'2015-12-16 19:08:24'}, {u'user_id': 3, u'title': u'Remind me again why the form?', u'comment_id': 23306, u'content': u'Hi Anna, how\'s the work going, can I help? I was redoing the minisite for Lote5 and thinking where travels would be best organised.
\n\nDo we use the form only for non EU participants (not too many!) or for all? If for all, it means you will be taking care of travels in general, alongside Irene?\xa0
\n\nWe also have the travels and accommodation team for this (repurposed so it\'s not just Venue team, but includes most logistics).\xa0
', u'post_id': 5056, u'date': u'2015-12-16 16:29:22'}, {u'user_id': 2201, u'title': u'Perfect! Thanks a lot @Noemi! We definitely can ', u'comment_id': 23305, u'content': u'Perfect! Thanks a lot @Noemi! We definitely can not have people\'s personal info public, so let\'s send the google form to the registered participants. How do we make it accessible for newcomers?
\n\nWill work on the text to send on CS during the week.
\n\nThanks for your help!
', u'post_id': 5056, u'date': u'2015-12-14 20:38:31'}, {u'user_id': 3, u'title': u'What do you think?', u'comment_id': 23304, u'content': u'Anna, last years we had a wiki online and people would fill in their information. That works quite well.. but less so if people need to share personal info (ID numbers).\xa0If we\'re going with a google form, we can embed it here online (tried it below). If it\'s embedded, we also have a comments section to offer help. Works?\xa0We start by sending it to everyone who registered, but is also accessible immediately to new people.
\n\nI shared with you access to the Lote5 drive, if you get started on the couchsurfers letter see there other example of texts.\xa0
', u'post_id': 5056, u'date': u'2015-12-14 18:23:00'}, {u'user_id': 2201, u'title': u'Perfect! Thanks a lot! Yes, I can take ', u'comment_id': 23301, u'content': u'Perfect! Thanks a lot! Yes, I can take care of accommodation + travel coordination for non-EU participants. Is there a draft of the text to be sent to CSers in Brussels or shall i work on it?
\n\nWho and when needs to fill in the form\xa0? Is it for all the participants? Shall we have it online for them to fill in or send to selected participants\' email address?\xa0
', u'post_id': 5056, u'date': u'2015-12-14 10:18:54'}, {u'user_id': 2330, u'title': u'Undisclosed content ', u'comment_id': 23258, u'content': u'Undisclosed content', u'post_id': 5056, u'date': u'2015-12-13 20:58:53'}, {u'user_id': 8, u'title': u"Don't stress, it's all good :)", u'comment_id': 23216, u'content': u'Anna don\'t worry, English is fine. I sent a first round of emails each slightly different to see which ones draw a response. heard back from Swedish embassy, fingers crossed I\'ll send the rest to all the other embassies in English. If you can help with the accommodations and travel coordination that would be more than enough <3
Damn, I\'m too busy these days so I guess I don\'t have time to translate the letter into Armenian. Do you think you can send them the letter in English and French? Pretty sure if they are interested they would get back to you even if it\'s not in Armenian. @Nadia
', u'post_id': 5056, u'date': u'2015-12-12 19:42:24'}, {u'user_id': 8, u'title': u"ok here's the list!", u'comment_id': 23013, u'content': u'Hi Anton, as promised I put together a budgeted list (you can see the detailed breakdown too), and highlighted the ones we could especially use help securing in yellow here:\xa0http://bit.ly/1TKQxGV
\n\nWhat do you think?
', u'post_id': 5056, u'date': u'2015-12-14 11:42:42'}, {u'user_id': 8, u'title': u'Ok will put together a list and post tomorrow', u'comment_id': 22609, u'content': u'Thank you Anton, appreciate the effort. I\'ll check with\xa0@KiraVde\xa0and\xa0@ireinga, what we already have managed to source and what we still need help with. Will post a short list here tomorrow.
', u'post_id': 5056, u'date': u'2015-12-13 11:43:46'}, {u'user_id': 2989, u'title': u'Undisclosed content ', u'comment_id': 22070, u'content': u'Undisclosed content', u'post_id': 5056, u'date': u'2015-12-12 14:08:02'}, {u'user_id': 8, u'title': u"Summary from today's call", u'comment_id': 20291, u'content': u'Venue: confirmed that we will be using the Smart.be venue. They need from us:
\n\nList of technical equipment needed
For Creative industries track: breakdown of all ways they can engage with the event and help make it a generative experience for everyone involved.
On friday they are running a big party for admin to which we are invited. Nice occasion to see how space works for 120 people, as well as to meet the admin/decision makers in the organisation and introduce edgeryders, Starts art 19:30.
They also want to run an event in Mollenbeek\xa0Molenbeek on the history of Italian immigration to Belgium. Relevant to @Anton_Sabbe\'s work:\xa0perhaps we can host a discussion with people who remember, kids of immigrants and grassroots orgs. As well as people currently in asylum seeking process. Possible for KBC to finance food/drinks and documentation of the event as part of the research/consultation process?
Onboarding new participants/signups:\xa0
\n\n-\xa0\xa0Step 1: \xa0Get them to post hello and personal introduction in arrivals to make it easier for people with complementary interests and relveant knowledge to connect with them
\n\nMoneyfinding: one of irene send out sponsorship proposal in exchange for ticket to lote5. one pager and right package and some more metrics. Can use\xa0http://agency.edgeryders.eu/ as reference.\xa0
\n\nKira will contact Belgian tax authorities for data about size of target market for smart.be
Nadia and Irene will look at the one-pager sent to Lionel, and boost with numbers and improved information about offering.
-European Cultural foundation: Irene will get in touch regarding partnership with event.
\n\nTravel grants: We have agreed that we will send query to all embassies rather than expect participants to do the paperwork involved.\xa0
\n\nWe need template translated into German (Hegazy? Matthias? Caroline? Susa?) and Italian (Irene will do)
We need to sent out the email to all embassies by tomorrow (Nadia will email German speakers and ask for quick translation help today)
Irene will check about the criteria and process/paperwork required for the other funding opportunity (not ECF)
Speakers and program:\xa0Noemi has gotten a few replies to email. Better to call and confirm as well as help set title/topic. Then update the program manually.
', u'post_id': 5056, u'date': u'2015-12-09 10:12:00'}, {u'user_id': 1856, u'title': u'Failing at showing up for community calls', u'comment_id': 14883, u'content': u"sorry guys, I got an invite to participate in a yoga class to raise funds for a waiter's dream to become a train conductor. This.Is.Real. And obviously such a good idea I couldn't say no. Let me know if there's anything pertinent I should be aware of, I know I haven't participated in any for #LOTE5...
", u'post_id': 5056, u'date': u'2015-12-08 19:05:12'}, {u'user_id': 8, u'title': u'More topics', u'comment_id': 7579, u'content': u'Announcing the travel grants (and tying them to a number of tasks/areas of responsibility) as well as sorting out Visa materials for non-eu based participants. Previously it has been posting a number of posts: a) personal introduction in arrivals b) story/deeper reflection about personal relationship to failure c) proposal for session they are willing to lead d) high quality comments on relevant posts from other participants. e) take on practical task e.g translation of twitterstorm relase materials or writing newsletter or handling social media curation for two weeks or onboarding new arrivals for 2 weeks or something else.
Onboarding new sign ups on platform: there has been a stream of new signups whom I believe did so due to interest in LOTE5. Usually people need to be contacted and helped to navigate the event and to get over the threshold of posting on the platform/starting to engage in the conversation. We need someone to drive this for two weeks.\xa0
Dedicate a communication workshop on skype/in office for the comms team: planning activities, producing relevant materials e.g trailer, prompting participants to help spread information and engage others in contributing.
Hi Alberto,\xa0I am finally starting to get involved, yay!
\n\nOur project, the one Nadia and I will run next summer semester at UdK Berlin is best described here: HACKING UTOPIA. One aspect of course are the refugees and I would be happy to get started now since there is a lot going on in Berlin as well. We have quite an agenda and will definitely need help if we want to successfully create good ideas AND crowdfunding campaigns for the OpenCare project by July 2016. So anybody who wants to jump aboard is most welcome and I am looking forward to conversations and meetings online and in Berlin!\xa0
', u'post_id': 5068, u'date': u'2015-12-07 13:09:25'}, {u'user_id': 1450, u'title': u'and from Gaza...', u'comment_id': 10361, u'content': u'\n\n\n"A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.
\n\n...
\n\nDoctors who have tested out the equipment have said it is as effective as stethoscopes by leading brands, despite being a fraction of the price.
\n\nAudio tests have also shown that the Glia stethoscope was on par with the leading model on the market, the Littmann Cardiology III."
', u'post_id': 4909, u'date': u'2015-10-26 15:37:13'}, {u'user_id': 5, u'title': u'Gravitation is also overrated', u'comment_id': 18061, u'content': u'Interesting article of yours, just read it. Thanks for writing it! So, to be a bit heretical, one could say: Political rights are overrated. The only time you need them is if you need political change because of the current government being incompetent or corrupt. And given that the next government in Europe is usually just as incompetent and corrupt as the last one, they are of little use then either. The human rights record of democratic European governments with respect to creating a humanitarian crisis in Greece is also not that good In fact I\'d like to see some statistics about what caused real betterment in democracies: Election-induced changes, or extra-constitutional changes?
However, it\'s not yet decided. The latest Greek developments and the upcoming Spanish elections make me hope that elections can indeed (at times) be the peaceful, orderly revolution that we were always taught they are meant for. And where this works out, it\'s just great, literally a lifesaver.
\n\nI\'m taking too much though. Good night!
', u'post_id': 4134, u'date': u'2015-02-18 01:44:00'}, {u'user_id': 4, u'title': u'Things looking up', u'comment_id': 16450, u'content': u'On the subject of things being in the process of improving in Ethiopia, I have written my own account of that journey. I was stricken by the "Chinese syndrome" of a technocratic government with a fairly poor human rights record which is, however, quite accountable and successful, and enjoys a high degree of consensus. For a Westerner, this can be unsettling!
', u'post_id': 4134, u'date': u'2015-02-16 13:39:42'}, {u'user_id': 5, u'title': u'History of conflict', u'comment_id': 9973, u'content': u'Just read up on modern Ethiopian history, since I didn\'t know anything about it. Interesting. The civil war story is sadly the same mess that state politics is everywhere from time to time (Newest European example being Ukraine.)
"Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water." \u2013 To the point. Religious and cultural affiliation is often simply a lobbying / collective action tool for mundane interests.
', u'post_id': 4134, u'date': u'2015-02-16 12:09:36'}, {u'user_id': 1442, u'title': u'Happy to be part of the project', u'comment_id': 20951, u'content': u"Hi Alberto, thanks for introductions. We're glad to be on board!
\n\nlooking forward to collaborate.
\n\nbest
\n\nZoe
", u'post_id': 4133, u'date': u'2015-02-13 09:40:35'}, {u'user_id': 1442, u'title': u'Open Hardware', u'comment_id': 15867, u'content': u'Hi Marco,
\n\nas a makerspace we are more into using open hardware rather than designing/producing open hardware.\xa0
\n\nUsually when prototyping devices we use hardware as Arduino and we release documentation on github (code and design files in creative commons).
\n\nIf you want to move from a prototype to a product the choice could be moving forward and designing and producing your own board. \xa0Then you can analyze what is the best open hardware licence to use. It also depends on the type of device you are creating.
\n\nSafecast, for example, did like Arduino: releasing the design files in Creative Commons. Check this link\xa0http://www.bunniestudios.com/blog/?p=2218
\n\nThere is not a fixed rule.
\n\nbest
\n\nZoe
', u'post_id': 4133, u'date': u'2015-02-13 09:38:27'}, {u'user_id': 854, u'title': u'Welcome on board WeMake team!\n\nAlthough rather based on ', u'comment_id': 9152, u'content': u'Welcome on board WeMake team!
\n\nAlthough rather based on personal curiosity, more than based on this project\' scopes, I would like to learn more about your "open hardware" adventures... What licenses have you adopted? Do you experience any specific barriers (e.g.: the non-openness of most hardware basic components, ...)?
\n\nI am asking this because CERN itself, despite having introduced a CERN open hardware license, does not resort to that as often as we would like...
\n\nAnyway, looking forward to working with you!
\n\nMarco
', u'post_id': 4133, u'date': u'2015-02-13 07:27:26'}, {u'user_id': 120, u'title': u'Undisclosed content ', u'comment_id': 23384, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-06-10 08:42:56'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 21867, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-05-11 11:18:36'}, {u'user_id': 92, u'title': u'Undisclosed content ', u'comment_id': 19788, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-05-10 12:22:20'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 19442, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-04-13 12:22:40'}, {u'user_id': 4, u'title': u'The old man in the room', u'comment_id': 19317, u'content': u"Hold your horses. As the old man in this corner of the Edgeryders community, I feel it is my duty to say that the vast majority of people lived in rented dwellings up until the 1980s (in most European countries but not in America). The idea of mass ownership of homes was, according to historians, Thatcher's: she wanted more people to be ideologically tied in with the haves, or something to that effect. Apparently, her administration thought\xa0 that a society of home owners would be more invested (literally) in the status quo. They turned out to be mostly right.
\n\nAnyway, my point is that before that time people did have families, and they did not feel particularly flaky, quite the contrary. So I would submit that the perceived stability of a familial arrangement has little to do with home ownership. Maybe an important factor is, rather, the rigidity of the agreement that binds it members together: practically indestructible in the case of parent-to-offspring, solid but less committal in\xa0 that of sibling-to-sibling, more instable in that of life partner-to-life partner, and even more in that of the housemate-to-housemate.
", u'post_id': 1438, u'date': u'2012-04-13 11:52:09'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 17309, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-04-12 19:21:53'}, {u'user_id': 27, u'title': u'Undisclosed content ', u'comment_id': 14850, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-04-12 16:09:15'}, {u'user_id': 4, u'title': u'The co-housing expert', u'comment_id': 13216, u'content': u'Simone, here on Edgeryders, is the chairperson of the first really successful co-housing scheme in Italy. This is his story: I suggest you get in touch, I know hime personally and he is a very nice, helpful personal.\xa0
', u'post_id': 1438, u'date': u'2012-04-14 10:37:51'}, {u'user_id': 809, u'title': u'Cooperative housing is a solution', u'comment_id': 13198, u'content': u"(I think).
\n\nI neither know or interact with my neighbours.This is wrong, I always thought it is deeply wrong.
\n\nCo-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?
", u'post_id': 1438, u'date': u'2012-04-14 10:12:14'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 13152, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-04-14 10:02:28'}, {u'user_id': 809, u'title': u'Alternative family', u'comment_id': 13066, u'content': u"I agree with all your proposals, but I was talking about alternative families for hetero people, people who are attracted to the opposite sex, but didn't meet yet the right partner.
\n\nThese people can't use the same sex marriage solution.
\n\nFriends are great if they are friends for life. But how can you actually make them stay\xa0 for life...because friends might decide one day to build their own family, so at that point they will be less present ...
\n\nHow to make it work ?
", u'post_id': 1438, u'date': u'2012-04-14 09:42:10'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 12845, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-04-13 10:50:32'}, {u'user_id': 809, u'title': u'Alternative family', u'comment_id': 12379, u'content': u"I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family\xa0 consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended/alternative families.
", u'post_id': 1438, u'date': u'2012-04-13 06:53:58'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 11006, u'content': u'Undisclosed content', u'post_id': 1438, u'date': u'2012-04-12 12:14:21'}, {u'user_id': 809, u'title': u'So how is your new type of family like?', u'comment_id': 7492, u'content': u'Is is based on friends or ...more than one life partner...or young people only ? I am really curios to learn & know !
', u'post_id': 1438, u'date': u'2012-04-12 11:10:56'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 27046, u'content': u'Undisclosed content', u'post_id': 1518, u'date': u'2012-05-10 07:07:09'}, {u'user_id': 605, u'title': u'Hey MissyK8, ', u'comment_id': 26260, u'content': u'I would say
\n\nHey MissyK8,\xa0
\n\nI would say thank you for this so practical checklist before moving city (quite useful for people like me who are at least once a year changing living place...).\xa0
\n\nBefore going to study in London, my cousin who has stayed there for ages gave me a smart advice that I followed faithfully ... "Walk fast and never say No"
\n\nNever say No: There are so many opportunities, chances, things to do in London that even if you do a full program you still miss some... It is the city that you really have to go out there and grasp experiences! You never know unless you do it!\xa0
\n\nWalk fast: Everything is moving so so so fast that at some point you will need to catch them! And the only way to do it is by walking fast! Even if you are a "slow walker" as myself before London, the city drives you \xa0
But.. unfortunately I couldn\'t agree more with "sort out yourself financially"...especially for students is a very expensive city. On the other hand there are a lot of things to enjoy freely in the city.\xa0
', u'post_id': 1518, u'date': u'2012-05-09 21:45:40'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 24755, u'content': u'Undisclosed content', u'post_id': 1518, u'date': u'2012-05-10 07:01:47'}, {u'user_id': 30, u'title': u'Ah, London, London...', u'comment_id': 24619, u'content': u'I think that countries with a single overwhelmingly large urban capital have real problems. Finland, Iceland, Britain all have these huge singular attractor cities, and the result is absolutely insane property prices and a culture of struggling to stay in the center because the rest of the country is trying to move there too.
\n\nAmerica has at least six "attractor cities" for different things - LA, San Francisco, Seattle, Chicago, New York, Washington DC and many minor cities with their own specific pulls, but there\'s nothing like that in the UK or in much of Scandanavia.
\n\nGermany seems to have this multi-focal thing going on too, Berlin\'s only 2m people!
', u'post_id': 1518, u'date': u'2012-05-09 21:42:24'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 21689, u'content': u'Undisclosed content', u'post_id': 1518, u'date': u'2012-05-10 06:53:58'}, {u'user_id': 4, u'title': u'Simple and elegant', u'comment_id': 21483, u'content': u'I like this! It is a simple checklist that anybody can go through when moving to a new city. I am giving you +50 reputation for great content.
', u'post_id': 1518, u'date': u'2012-05-09 21:14:57'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 16996, u'content': u'Undisclosed content', u'post_id': 1518, u'date': u'2012-05-10 06:52:52'}, {u'user_id': 8, u'title': u'Am preparing a move to a new city', u'comment_id': 16682, u'content': u'and it it both exciting and daunting. Especially the social aspects, making friends- yes building that family. How do you go about building those resilient ties?\xa0
', u'post_id': 1518, u'date': u'2012-05-09 20:57:41'}, {u'user_id': 282, u'title': u'So many memories', u'comment_id': 13378, u'content': u"I must admit that I could hardly focus on the Shakespeare play... my eyes were too wide open!
\n\nCockroaches, yuck! Cockroaches and scorpions, I ABSOLUTELY cannot stand. I get a terrible nervous breakdown when I come face to face with such bugs. (I lose it.) I thought the overall infestation was in New York.
\n\nValentina, what you wrote about speed is quite fascinating. Why would such speed be admirable? I do not care if others think I'm a 'provincial'. After all, when we were only babies, none of us did hurry to gnaw on the rattle. What happens to us when we grow up? The things we do in large cities...
\n\nWhen I was younger, skyscrapers and large scale buildings were like magnets. I enjoyed urban life as if I was eating caviar. I thought only about consuming (visiting) as many cities as possible, running over to another destination, visit more museums, have some more art. There was no way to quench that thirst.
\n\nI would have lived day and night at the British Museum. Trafalgar Square, the swans in the park, the pigeons flying over public spaces. The royal guards with their red hats, fantastic bookstores with art books up to the ceiling, the Royal Opera House every night. The double-decker buses, cars driving on the left side of the road, to be almost crushed while crossing the street because you forgot that cars drive on the left side of the road. The strange taxis. People in the pub at lunchtime, under a blazing sun. I do not know how they managed to withstand alcohol. People at the pub after work. I do not know how they managed to withstand alcohol. Apartments with beautiful ornemented fireplaces, Victorian architecture, etc. So many memories of a beautiful city!
", u'post_id': 1518, u'date': u'2012-05-11 04:27:52'}, {u'user_id': 282, u'title': u'So lonely ', u'comment_id': 13041, u'content': u"Thanks for mentioning about your sister's symptoms. Now that you talk about it, I had similar symptoms as well. In London, I kept tripping on invisible things and I remember doing a lot of falling in the street for no reason at all. That was totally embarassing! In Paris, I was getting tired quickly (like your sister). One day a week, I locked myself alone in the apartment without going out all day. This allowed me to maintain my balance.
\n\nExtreme reactions take place also in other major cities, not just in London. In Paris, I always feel that a revolution is about to explode in the minutes that follow. There are a lot of frustrated people in large cities. I wanted to order a drink in a cafe and the guy next to me threw a big fit because he thought I wanted to steal his turn, while I simply had not seen him. People's nerves are like violin strings, hyper sensitive! Too much frustration and dissatisfaction can lead to violence.
\n\nIn Strasbourg last March, in the tramway, a man listened to a portable radio. He was talking to himself and having an imaginary discussion with the radio host. He was responding to everything that the radio host said.It is awful to be so alone that one has to talk to a radio! Everyone was uncomfortable and felt the tension in the car tram so strong that we could have cut it with a knife. In tramways, hospital waiting rooms, and just about anywhere, no one speaks to each other. People are standing very close to each other, but yet, everyone avoids the gaze of the other. The worst thing are elevators. I always feel like screaming in elevators. People look at the doors without paying attention to others around them. I watch the lights move and hope to get out of there as fast as possible.
\n\nThe WHO has warned recently that the number of cases of dementia will triple and that countries seriously must prepare plans of action to deal with this reality.
\n\nHectic urban lives tend to cause a lot of stress. There are billboards everywhere flashing in your face, few green spots, people either yell at you or ignore you. At the end of the day, all these experiences accumulate in the mind.
\n\nI would not want ot work on development and management of large cities. It must be a nightmare to manage traffic, and try to improve the quality of life of citizens.
\n\nWhat would help make life better?
\n\nAre there programs for community gardens in London?
", u'post_id': 1518, u'date': u'2012-05-12 04:52:46'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 12802, u'content': u'Undisclosed content', u'post_id': 1518, u'date': u'2012-05-11 11:09:18'}, {u'user_id': 125, u'title': u'Undisclosed content ', u'comment_id': 12194, u'content': u'Undisclosed content', u'post_id': 1518, u'date': u'2012-05-10 07:50:15'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 10690, u'content': u'Undisclosed content', u'post_id': 1518, u'date': u'2012-05-10 06:46:59'}, {u'user_id': 282, u'title': u'Serious financial shock through the system', u'comment_id': 10115, u'content': u"I can imagine that looking for housing in London must be quite a serious shock through the system! It is an expensive place to stay. I tried to live there several years ago, and as a matter of fact, my finances did not survive this shock wave. I had to leave and abandon my dreams of living abroad. I come from a small town of under 100,000 people: I had never seen rent being paid by the week (because otherwise it would be too much of a financial burden), before I lived in London.
\n\nHow do the fragile wallets of young people make it, nowadays, in this city? I lived in an attic, and even this was too expensive for me!
\n\n(For the cultural life, an A + ! It was my first time, A Midsummer Night's Dream, played by completely naked males. And they kept jumping around too. Whoa...)
", u'post_id': 1518, u'date': u'2012-05-09 19:12:31'}, {u'user_id': 5, u'title': u'Ahead of its time', u'comment_id': 19954, u'content': u'\n\nThis is what I like about the art that takes the shape of "pile of stuff" etc.: it makes people think, provokes them, calls them to action, like to add another computer as they did. And finally something very useful can emerge from all this that is ahead if its time: hackerspaces and fab labs weren\'t much around in 2000 when you founded Access Space, were they. The arts people found a way to start such a project even when the idea wasn\'t ripe for "regular", business and technical type innovation. Thanks, folks!
Hi James! This project is great! And I\'m happy to read it and find you now because on Edgeryders we want open a space to discuss about how we can translate the intangible social, cultural, creative value to a tangible market one?
\n\nlook at this link to read more about the proposal
\n\nhttp://edgeryders.ppa.coe.int/shine-some-light/mission_case/what-value-cultural-production
\n\nThere a lot of Edegryders who have similar experiences with collaborative processes, free and open culture, research of financial aid for creative and social projects often defined "cool, but too innovative", with a poor market value also if the cultural, social, creative value is very high.
\n\nAre you interested? I hope so!
Hello James, I am Alberto and I actually used to run a nationwide community of 3.000 creatives working on 400+ projects \xa0- while working for the government in my country, Italy. All I can think of is how cool would have been to have you in there!
\n\nThis is great, really. And replicable! And the attitude makes so much sense:
\n\nWorking as an artist, I saw that the city was failing to adapt to the emerging information economy\n\n
I suppose most people would go "Say what?" when they read this line.
As an economist, let me go through what I love about this:
\n\nI am very unimportant, but I will help you if I can. Meanwhile, let me ask you this: how much did you have to raise to get the warehouse going in 1998? Who did it, and how? And the same again for the next step of opening Access Space in 2000: how much, who did it and how?
', u'post_id': 1710, u'date': u'2012-03-13 20:50:29'}, {u'user_id': 3, u'title': u'Just re-sent invitation, you can simply reply to ', u'comment_id': 18436, u'content': u'Just re-sent invitation, you can simply reply to the email.
\n\nlooking forward to hearing from you!
', u'post_id': 1473, u'date': u'2012-04-24 12:09:28'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 17707, u'content': u'Undisclosed content', u'post_id': 1473, u'date': u'2012-04-24 11:51:24'}, {u'user_id': 3, u'title': u'Is there an influence on how we behave socially offline?', u'comment_id': 15815, u'content': u'Kate, yours are wonderful and precious insights, and speak volumes to people at the beginning of their online social networking "careers".
\n\nOn the pitfalls with facebook, I was commenting on Ildim\'s report on social networks that for a long time I wanted to stay within a hundred friends precisely because that\'s how much I thought I am able to manage, and make sure the relationships are real and not superficial. But how many friends are too many friends? one asks although of course there\'s no right answer. My capability is really reduced to maintaining lively, yet sporadic relationships with only a few, but probably there comes a time when your work or interests, like yours for politics and music, really drive more activity and it becomes natural or indispensable to cultivate those interests by sharing interesting stuff with the people around, with as many people around.
\n\nWhilst Facebook/Social Media in general is a very good thing, people have forgotten about the pleasure there is in being in someone\'s physical company, or hearing their voice, and I am trying to spend less time and less energy with my online world, so that my outside world can be full of experience.
\n\nAbout the above, do you think there can be an effect of spending a lot of time online and fogetting or losing ability to connect offline as well? Not as a rule of course, but can that happen? Or that the more confident you get online, the more inhibited you can become when you\'re out of that comfort zone and out with strangers? I\'d be really curious to read some studies on that.. Lyne here, who\'s really active online, she says (can\'t find the reference) she can spend days without even talking to someone, and that she even feels good about this. Of course I\'d have to ask her if she was as quiet before starting to be online most of the time. I\'d doubt after a certain age, and being socialized mostly offline, as some of us were before fb and twitter, you would no longer feel comfortable interacting outside the online sphere.
\n\nSpeaking of Strasbourg, we\'re looking forward to a confirmation on your part, you should\'ve already got an invitation to the June conference via email. Also check your spam folder, it\'s dated April 13th..
', u'post_id': 1473, u'date': u'2012-04-24 11:19:26'}, {u'user_id': 102, u'title': u'Undisclosed content ', u'comment_id': 12906, u'content': u'Undisclosed content', u'post_id': 1473, u'date': u'2012-04-24 11:59:01'}, {u'user_id': 4, u'title': u'A late addition', u'comment_id': 12509, u'content': u'I recently came across Charlie Stross\'s inadmissible assumptions about the Internet. I find they are a good complement the Third Law.
\n\nThe party in Strasbourg sounds like fun. Oh well, till next time
Kate, what a beautiful, thoughtful mission! I am impressed. It\'s all wise, with the wisdom that comes, well, from experience: from having put in the famous 10,000 hours that, allegedly, make us into masters of anything (yes, you have probably spent thousand of hours online). It\'s all there: the enjoyment and the exhaustion, the new exhalting friendships and the wariness, the interesting, up-to-date information and the longing for physical interaction.
\n\nA friend of mine like to say that he does not engage anymore in any debate between techno-enthusiasts ("we will all upload ourselves into a Global Awareness and evolve into pure energy") and techno-sceptics ("all of this information, so little knowledge! People are becoming more and more stupid!"). He thinks that these two positions are really flip sides of the same techno-deterministic coin. By contrast, he does not believe we are our technology. He likes to quote Kranzstein\'s Third Law instead: technology is neither good nor bad, nor is it neutral. And this means doing what you do: dipping a foot in the water while balancing on the other one; making careful decisions whether to engage, how much, who with. Looking at the back end of things, where technological effects (the costless, infinite replicability of digital information) and economic ones (like Facebook encouraging you to share more than it\'s good for you, because they sell targeted advertising, and the more you share the more precise their targeting gets) gently nudge your personal life. It might look as hypocrisy, but the Victorians considered a little hypocrisy a virtue, and it might be they had a point.
\n\nNone of this was introduced in the digital age. Technological constraints have always been there: chances are, 200 years ago you\'d end up marrying someone from your village - the high costs of travelling (i.e. the inefficiency of travelling technology)\xa0 made it impractical to court anyone else. And don\'t even get me started on the social implications of economic relationships: Karl Marx even called his underclass "proletarians", childrenbringers. If you had no assets, a sound survival strategy was to have many children that could be put to work. But this is our age, these are our challenges, and we need to meet them. As far as I can see, no one has found a better way than your trial-and-error, trying to seize the opportunities of richer human relationships\xa0 while staying safe from the risks. And yes, it might be a good idea to give Diaspora a go.
\n\nOT: you were in Strasbourg? This is where we are! What a shame we did not get a chance to meet up.
', u'post_id': 1473, u'date': u'2012-04-23 19:44:00'}]
