{"nodes":[{"node":{"title":"\"Citizens Guides\" exist ","content":"\nOf course with some different focus groups and cases,\u00a0but \"The Citizen\" does not exist. So what I'd think is crucial is the presentation format and delivery method.\nFor example after a catastrophy (or on the march) very few people will have the time to read about it in Red Cross or USAid pdfs even though they would probably remember critical things much better than in a classroom. Some can understand scientific papers, and others cannot read. Generally, if you want to be prepared you need to invest some time into practicing or reading e.g. \"Where there is no Doctor\", or stocking some tools or supplies before shit hits the fan. Not many people are ready to do that. It is much less glamorous than posing with big guns and other stuff. Often people (correctly) feel it is unlikely that they would get a return on investment for their effort. Also, crises affect different regions (e.g. climate) in different ways, in those regions e.g. urban areas will be affected differently from rural, in those places different people (age, occupation, gender, minority) will again be affected differently in short to long term.\nMost documents I know are written in a linear fashion, either for \"the general populace\" or authorities, or a few select critcal professions. Research articles in the field are often a bit better (if you can get them and understand them) as they show more of the detail under the hood. There is quite a bit out there in English, German, and I am sure French language. I would expect that other languages can be a very mixed bag.\nInterestingly almost none of the materials I know are intended for reproduction and dissemination (perhaps modification) in the field, which I think is a critical shortcoming. Economically you often cannot but be largely unprepared for low frequency large impact events. If you could could start quickly copy-pasting stuff from a relatively few seeds once the event has come to pass, you would very quickly be able to deliver information and organize action far better.\nI think the most realistic forms of reproduction in the field are (including grid down, excluding perhaps nuclear EMP scenarios):\n- Copies via smart phone, either onto micro-sd card or using e.g. bluetooth file transfer.\n- Recording of spoken\/played material via phone, perhaps eventually put into writing.\n- Pencil\/coal stick\/copy machine copies of simple illustrations\/heuristics\/nmemonics\/ not more than a few lines in most cases.\nMy suggestion would be a less linear and mostly digital collection of material (even if the grid will be down it will be relatively easy to charge a smartphone\/tablet\/etc from solar or car batteries). Ideally most of it can be accessed through different lenses - weighing urgent vs important, for the specific \"type\" of audience, in a (or several) appropriate formats. On the latter point I would strongly recommend inlcuding something that is audio based with separate illustrations (and check lists, e.g. in playing card deck, or digitally as \"album art\" format) and incremental navigation (e.g. if you need to know more on this topic press forward 9 times and you hear the announcement \"xyz\"). An audio lecture then could be made up of a summary of 1. the most important things to know in a hurry, 2. the main content, 3. mnemonic take aways to repeat to yourself.\nAudio has the advantages that you do not need to drop everything you're doing, you can do it while walking, and you can do it in the dark.\nIf you use 64kbps (clear spoken language) mono mp3 audio you need approximately 1 MB for every 2 minutes. If we assume 24h of spoken material that would be 720 MB. This fits into almost every memory card (or CD), mp3 player and can be copied using bluetooth version 3 in 5 minutes, and version 2 in 30 minutes. The most important things everyone needs to know should probably be available in different languages but be only 3-15 minutes in duration. Additional material can be provided in ebook format (which can be referenced in the audio) with very little space required.\nMy schematic in the other comment is an example for non-digital content that can also be reproduced in the field, when you actually have demand. It could also be airdropped as leaflets of course.\nI wanted to make a heuristic approach to re-establish some skeletal form of organization which can catalyze coopreration (especially in the 48h hours of pro-social behavior mostly observed after an acute catastrophe). I thought this is necessary because very often there exists no effective interface to the local society that the \"professional care & aid circus\" can dock into, and many of the respective group's fuck-ups would be easier to avoid if there was such an interface. The idea is to establish channels on the ground within the local community which accumulate, curate (discuss), and disseminate critical information. Those information dense hubs can relatively easily be found and interfaced with the professionals. If the crises do not have a clear onset like an earthquale or flood, but is more creeping other approaches may be more effective though.\nThe implied understanding that may motivate people is the following: Doing difficult situations alone is usually not a good idea*. Put 20% into helping each other, and if the majority survives you'll probably be among them.\nThe simplified instructions: 1 of 5 connects and helps to coordinate. 1 in 5 helps to coordinate coordinators. Information must flow in both directions fast, and critical aspects need to be documented.\nMake a group in which you will quickly be able to trust, care, and communicate (so about 5). Then make groups of groups and dedicate 10-20% of your resources to communication & cooperation, about half \"upwards\" and half \"downwards\".\n*Something that rarely gets enough attention when you superficially glance at the prepper scene. Alone you are probably prey to your own stupidity, germs, or pack hunters. Your gun does not help when you are sleeping.\n","comment_id":"25320","post_id":"6926","user_id":"6534","parent_comment_id":"25294","creation_date":"Sunday, November 6, 2016 - 15:51","group_id":"0"}},{"node":{"title":"It was only an example","content":"\nIt wasn't meant as suggestion. :)\n","comment_id":"25318","post_id":"6926","user_id":"6534","parent_comment_id":"25314","creation_date":"Sunday, November 6, 2016 - 10:39","group_id":"0"}},{"node":{"title":"funding","content":"\ndo we think that we could find a funding agency willing to cover some of the costs related to pulling this project together?\nI look around and see many people on here who have 1st hand experience of dealing with crisies and disasters around the globe. I assume all of us could reach out to at least 2 or 3 major organisations who would be interested in contributing to a large scale \u00a0useful project like this.\ni wonder if we could approach an organisation like Wellcome Trust as a humanities\/health cross over project? What do you think @Bridget McKenzie? Would this be fundable if we polished up the process and deliverable ideas?\n","comment_id":"25317","post_id":"6926","user_id":"6559","parent_comment_id":"25315","creation_date":"Sunday, November 6, 2016 - 10:25","group_id":"0"}},{"node":{"title":"This guide is one of the","content":"\nThis guide is one of the reasons I decided to establish the assosiation \"Cosmus diy\" (the bureaucracy part). Most of the people here have experience at Idomeni and still have at the camps. But I think it must be more wide. Not only about the refugees' wave or about a specific place\/country. Maybe a few things can be the same but every place should have a diffirent guide. And then we can map and add people and skills or knowlenge.I also have an idea about the clothing problem and how we can do \"smart balls\" with clothes anywhere This is more complicated and I think it needs a video.\n","comment_id":"25315","post_id":"6926","user_id":"8957","parent_comment_id":"25294","creation_date":"Sunday, November 6, 2016 - 00:23","group_id":"0"}},{"node":{"title":"Thessaloniki or an island","content":"\nThessaloniki or a Greek island is better choice because people are more involved. And don't forget that is the project I 'm running now. So why, in Athens?\n","comment_id":"25314","post_id":"6926","user_id":"8957","parent_comment_id":"25311","creation_date":"Saturday, November 5, 2016 - 23:44","group_id":"0"}},{"node":{"title":"Istanbul is very high on my list","content":"\nIn terms of earthquake and emergency response. But I agree Italy and Greece are too.\nI've toyed a lot with the idea of having two-stage events, where the travel becomes part of the (optional) first stage. For example if we meet somewhere in\/around Athens for the second stage, you can have a distributed first stage start in Izmir (and continue on the ferry to Athens), or on\/around some of the airports that fly into Athens (may not be the best example as air travel is very fractured time, unlike train or ferry). Just a thought.\u00a0\nAlternatively one could try to do 1-2 prior hangouts where we use Edgesense (and of course human input) to either stirr the pot, or find close matches (as people prefer). If feel like meetings can be far more helpful if we already warm people up beforehand and not go in \"cold turkey\". Also, people who cannot attend physically can still help with the hangout organizaton - and can try to partner up with an \"agent\" who will be attending physically.\n","comment_id":"25311","post_id":"6926","user_id":"6534","parent_comment_id":"25294","creation_date":"Saturday, November 5, 2016 - 16:52","group_id":"0"}},{"node":{"title":"Agree","content":"\nThis kind of input really is helpful and i can already see a 'Citizens guide to supporting people in an emergency' style document that contains these kinds of ideas and responces.\nThey key will be to get lots of people who have experience of working with refugees already, together with lots of people who have useful experience from other areas of life. Then both sides can bounce off each other.\nI still think that a hackathon like this would be best suited to taking place in Greece or Italy, where the incoming flow is still increasing and there is a high likelihood that another disaster may occur (i'm thinking about the recent Italian Earthquakes).\u00a0\n","comment_id":"25294","post_id":"6926","user_id":"6559","parent_comment_id":"25289","creation_date":"Friday, November 4, 2016 - 09:18","group_id":"0"}},{"node":{"title":"This is why it needs to press","content":"\nThis is why it needs to press the smart mode button.\n","comment_id":"25292","post_id":"6729","user_id":"8957","parent_comment_id":"25276","creation_date":"Thursday, November 3, 2016 - 23:46","group_id":"0"}},{"node":{"title":"No problem! Anytime it;s ok!","content":"\nNo problem! Anytime it;s ok!\naravellasalonik@gmail.com\u00a0 skype aravella1717\n","comment_id":"25291","post_id":"6729","user_id":"8957","parent_comment_id":"25051","creation_date":"Thursday, November 3, 2016 - 23:39","group_id":"0"}},{"node":{"title":"Great insight from your treatment change experience.","content":"\nTalk about a slow revolution! It makes sense to me that we're hardwired to take univocal instructions more seriously, it shows that the doctor is not doubting his approach.\nPatient-doctor\u00a0dynamics in healthcare is probably cultural too - we've heard stories from China where ambivalence or open endedness in medical consultations inspired fear more than confidence.\u00a0\n\u00a0\n\u00a0\n","comment_id":"25290","post_id":"6922","user_id":"32","parent_comment_id":"25284","creation_date":"Thursday, November 3, 2016 - 23:29","group_id":"0"}},{"node":{"title":"You guys made my day. Thanks!!","content":"\nThis.\n@Alex Levene this is the kind of question and expert\u00a0input or exchange we'd want at the hackathon to support refugees in Jan\/ Feb!! It's pretty awesome, and imagine including all these kinds of info in a curated, structured document for any given question!\n\u00a0\n","comment_id":"25289","post_id":"6926","user_id":"32","parent_comment_id":"25287","creation_date":"Thursday, November 3, 2016 - 23:13","group_id":"0"}},{"node":{"title":"Exciting!","content":"\nIt's great to see you ladies @ybe and @Aravella Salonikidou scheme! I am sure\u00a0your meeting will be a great success.\n","comment_id":"25288","post_id":"6729","user_id":"34","parent_comment_id":"25051","creation_date":"Thursday, November 3, 2016 - 22:54","group_id":"0"}},{"node":{"title":"Like this!","content":"\nLike this!\n","comment_id":"25287","post_id":"6926","user_id":"8957","parent_comment_id":"25274","creation_date":"Thursday, November 3, 2016 - 21:55","group_id":"0"}},{"node":{"title":"@trythis thank you! I 'll","content":"\n@trythis thank you! I 'll study all these carefully! We don' t do backpacks for the refugees anymore so we focus to backpacks that we can prepare for ourselves or other people and keep them for an emergency. So, we have to think about many diffirent things. For the refugees I've done this:But this is a draft. It needs something professional with the same style in a platform on line. When somebody wants to prepare a backpack could use specific items and also a list with more details for its item. What is this? How to use it e.t.c.\n","comment_id":"25286","post_id":"6926","user_id":"8957","parent_comment_id":"25269","creation_date":"Thursday, November 3, 2016 - 21:54","group_id":"0"}},{"node":{"title":"collaborative acupuncture","content":"\nThanks, @Rune.\nYes, I think there could be some very interesting cross-over with the WeHandU-type approach. Notwithstanding what I said in reply to @Alberto below about the need to retain a degree of 'expert-pateint' hierarchy, I am very interested in exploring the prospects for more collaborative healing.\nIndeed, the nature of Traditional East Asian Medicine is very collaborative already - patients can be given exercises to do, dietary changes, self-moxa kits, or herbal teas that all supplement and reinforce the acupuncture treatment, meaning that they are far more involved in their own journey back to wellness.\nOne idea I had was to supplement the clinic with a once-a-week 'Moxa Club' where people could come and learn to safely use moxa on each other. Many more people could be treated simultaneously than is possible with just one acupuncturist; if partners, friends or family came together, they could then continue treatments at home; and the overall message - that people should be learning the skills to keep themselves healthy - would be inherent in the model.\nThe BAcC is actually moving funding towards Proof-of-Concept studies for 2017; there might be some scope for creating a project that combined different aspects of Opencare in this sort of way.\n","comment_id":"25285","post_id":"6922","user_id":"1915","parent_comment_id":"25239","creation_date":"Thursday, November 3, 2016 - 19:58","group_id":"0"}},{"node":{"title":"changes","content":"\nSure - the venue I was in had a lot of character, but also a steep staircase and difficulties in heating it sufficiently. Turns out there is a community centre on the other side of town that already has a lot of people passing through doing interesting community things. So I'm moving there for ease of access, easier parking and the synergies with other projects.\nI was doing the clinic during the day, but a lot of people had problems getting childcare or said they could not come because of their working hours, so I am thinking I will run it from the afternoon into the evening instead, to give people a chance to come along who otherwise couldn't. The other option would be Saturday morning, which would certainly get people in.\nThere's also a good chance I will be combining forces with a western herbalism school, who will ahve student herbalists prescribing herbs under supervision in the same venue.\nHow my treatments have changed is a little more subtle - one unexpected area is that I was previously attempting to be very 'collaborative' in my treatment style, not pushing people to commit to treatments unless they were self-motivated to do so, leaving it open for them to decide how deep they wanted to go with lifestyle changes etc.\nBut it turns out that people actually want a bit more guidance \/ authority than that - perhaps this is just the legacy of hierarchical healthcare, that they feel more comfortable with a model that they are familiar with, or perhaps it is actually a greater part of being a therapist than I previously considered; that the nature of therapy is such that you need to have a degree of authority for the patient to productively assimilate the treatment. This obviously raises interesting questions about some of the 'horizontalist' projects featured in Opencare!\n","comment_id":"25284","post_id":"6922","user_id":"1915","parent_comment_id":"25256","creation_date":"Thursday, November 3, 2016 - 19:46","group_id":"0"}},{"node":{"title":"thx @Noemie, ","content":"\nfor your suggestion and here's the link again http:\/\/www.traumatour.eu\/2016\/09\/30\/to-thessaloniki-and-back\/ and also this one http:\/\/www.traumatour.eu\/2016\/11\/01\/last-call\/\n","comment_id":"25282","post_id":"6913","user_id":"8959","parent_comment_id":"25180","creation_date":"Thursday, November 3, 2016 - 19:15","group_id":"0"}},{"node":{"title":"Smells","content":"\nStrongly scented soap, rosewater, essential oil (careful with skin contact) on a scarf dipped maybe mixed with vasiline could could produce a pleasent or at least effectively masking smell.\nVicks VapoRub supposedly also works as mosquito repellent, as well as medical uses.\nIf you have small things that small you could fix them with a safety pin.\nEspecially for women I could imagine the opposite could also be helpful in some situations: https:\/\/en.wikipedia.org\/wiki\/Stink_bomb\nhttps:\/\/www.amazon.com\/Stink-Bombs-42-0003-12-Boxes\/dp\/B001MKRQBS\/ref=sr_1_5_a_it?ie=UTF8&qid=1478185871&sr=8-5&keywords=stink+b...\n","comment_id":"25277","post_id":"6926","user_id":"6534","parent_comment_id":"25252","creation_date":"Thursday, November 3, 2016 - 16:13","group_id":"0"}},{"node":{"title":"Nepal ought to be a good case","content":"\nThey ran the SOPs (but did not factor in that Nepal is hard to get to\/around in) so a lot of dogs were flown in to look for people under the rubble who had mostly perished by the time the dogs came. While they were walking their dogs in Kathmandu you really needed water treatment - absence of which can quickly lead to a loss of life that drawfs the ones they might have pulled from the rubble. Fortunately that did come before epidemics happened.\nAt the same time citizens were either sitting under tarps in the rain, complaining about a lack of water (while not catching the rainwater!), or standing in very long lines at the government water truck that could only serve 1 person at a time because no one had thought of a manifold.\n","comment_id":"25276","post_id":"6729","user_id":"6534","parent_comment_id":"24506","creation_date":"Thursday, November 3, 2016 - 14:15","group_id":"0"}},{"node":{"title":"In terms of materials and organization","content":"\nIf you want to upscale cost effectively you may have to look outside of the traditional materials selections. Something that is durable and available at large scale is Tyvek. I have an outer layer for a sleeping bag to make it rainproof which I suspect is of very similar material.\nFor (DIY) backpacks which hold a little more here is an interesting channel: https:\/\/youtu.be\/q8j051J51O8?list=PLZLagqylZ3j6bLG7hwcwE28Max5Kd9ZE-&t=564 this specific version may also work with the inline skate rolls without too much work.\nRegarding organization I had some thoughts (but mostly focused on immediately after a disaster) which may be more helpful for the refugees to get a little more organized (and perhaps interface with you better). It is a heuristic approach, so it is not intended to produce the optimal or ideal result - but to be reliably better than nothing, and it is mostly information focused.\n\n\u00a0\n","comment_id":"25274","post_id":"6926","user_id":"6534","parent_comment_id":"25252","creation_date":"Thursday, November 3, 2016 - 13:54","group_id":"0"}},{"node":{"title":"definitively","content":"\nI often recommend digital grieving. I kknow a number of sites that 'help' people grieving by providing nformation, testimonials, sharing stories, proposing\u00a0 exercices or rituals,... I think it is a great tool, especially for youngsters - since 'being online' is almost natural to them.\nAlso, for persons with few ressources, who feel very lonely, the internet, 'a digital community' is often their only link to the outside world. And their very first attempts in meeting and going into this outside world.\n\u00a0\n","comment_id":"25273","post_id":"6884","user_id":"8959","parent_comment_id":"0","creation_date":"Thursday, November 3, 2016 - 13:33","group_id":"0"}},{"node":{"title":"A third model: \"elderly peers\"","content":"\nMy mother is now fairly old (she was born in 1937). Women in the family seem to have good genes, though, and she, her two sisters and some female cousins in their late 70s and early 80s are still quite formidable. They are also close to one another. So, my mum does have another option, which is to move in with her sisters. This is not as crazy as it might sound, because by pooling their forces they can hold out much longer than each one of them in isolation. Also, they would probably find this psychologically less disempowering than having to fall back on us, because they would help each other rather than being only on the receiving side.\u00a0\nLike in John's description, my mother and her sisters and cousins are fiercely independent and would absolutely loathe becoming dependent, even on us.\u00a0\n","comment_id":"25272","post_id":"6870","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, November 3, 2016 - 13:18","group_id":"0"}},{"node":{"title":"Care work is embedded in more formal work than you'd think","content":"\nI think you would enjoy this @careday-team. I re-read it and thought of your angle, which allows for many explorations left and right:\u00a0an article making a case that\u00a0most of the work people do is on each other! so care work is just too unseen and mostly in underpriviledged jobs, genders to a minimum. Working classes as care classes, that's a strange idea that never occured to me:\nEven in the days of Karl Marx or Charles Dickens, working-class neighbourhoods housed far more maids, bootblacks, dustmen, cooks, nurses, cabbies, schoolteachers, prostitutes and costermongers than employees in coal mines, textile mills or iron foundries. All the more so today. What we think of as archetypally women's work \u2013 looking after people, seeing to their wants and needs, explaining, reassuring, anticipating what the boss wants or is thinking, not to mention caring for, monitoring, and maintaining plants, animals, machines, and other objects \u2013 accounts for a far greater proportion of what working-class people do when they're working than hammering, carving, hoisting, or harvesting things.\nThis is true not only because most working-class people are women (since most people in general are women), but because we have a skewed view even of what men do. As striking tube workers\u00a0recently had to explain\u00a0to indignant commuters, \"ticket takers\" don't in fact spend most of their time taking tickets: they spend most of their time explaining things, fixing things, finding lost children, and taking care of the old, sick and confused.\nCaring too much. That's the curse of the working classes.\n","comment_id":"25271","post_id":"6781","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, November 3, 2016 - 12:41","group_id":"0"}},{"node":{"title":"I can imagine that","content":"\nYeah - I can very well imagine the arguments (everybody has a slightly different background, experience, perspective, and very little time to communicate). Thanks a lot for being there for everyone though!\nLet me think out loud about the list a little.\nYou need to give a lot of information in very little time. It is important that it can be understood quickly. It is also important that people understand why some things are better than other things. Here is what I would try:\nTry to use a combination of images and text, a little like a meme. The image is most important (says more than 1000 words) and will ideally explain most of the things that have been discussed in many hours before. Ideally the people who are really deep into the topic do a thorough image search and you pool them together, and then photoshop or redraw. Of course one image (even if it is very good) can't explain everything, that is why you need a little text (english, greek, arabic probably). Similar to this (called \"exploded view) or this (but so you can photocopy it - so brighter and increased contrast) or this (the words explain the \"why\" not the item, if it is too difficult use another illustration). You may want to have one page for as a sort of inventory and one page as a sort of manual (e.g. there is a lot you can do with the space blanket that needs a little extra info (maybe Lizzie could also check the list?)).\nSome more things I thought of:\n- It is much easier to get kids to wash their hands while they play with something. Small pebbles or pearls also rub the hands so they get cleaned much better. Kids are big bacteria spreaders. More on hygiene. You can make a sink with the space blanket and duct tape, or an old plastic ice cream package (1L weighs 30g).\n- for washing clothes you can use the space blanket.\n- I would recommend 3 (ziplock?) plastic bags with sugar (perhaps with stevia - more weight efficient), salt, and a piece of soap. One bag big enough for this hot water \"bottle\". Heating or use hot rock or sand.\n- sterile saline solution (smallest possible), if you need more desinfected water, you can also boil\n- a comb (or just half)\n- vasiline (part for real use, but more for \"magic cream\" placebo effect)\n- kids earplugs (use alcohol to desinfect!), probably smart to tie in a piece of string for safety.\n- antiseptic wipes (can be \"refilled\" with alcohol)\n- in terms of clothes I would try to reduce cotton. Wool is fine for warmth if you have a windbreaker, if you can have at least one set of synthetic undergarments as they dry much faster than cotton.\n- personally I love wool leg warmers combined with short wool socks in the outdoors. Socks can be swapped and kept dry without much extra weight. The warmers can be regulated while walking and can be also used in many different ways. I'm not sure if they work well for kids though.\n","comment_id":"25269","post_id":"6926","user_id":"6534","parent_comment_id":"25252","creation_date":"Thursday, November 3, 2016 - 12:40","group_id":"0"}},{"node":{"title":"Hard to argue with that","content":"\nSocialization is the elephant in the room and teenagers are in no mans land\nWell, this is for sure. I guess our school system was designed\u00a0in a context where socialization happened outside the school and peer structures were robust. And maybe they are not that robust anymore, and anyway teenagers have very little time. This, by the way, is danah boyd's take on teens and social media in It's complicated: families saturate teenagers time with what she calls adult-approved activities, and they escape into social media to Just Hang Out.\u00a0\n","comment_id":"25270","post_id":"6919","user_id":"34","parent_comment_id":"25268","creation_date":"Thursday, November 3, 2016 - 12:35","group_id":"0"}},{"node":{"title":"totally agree!","content":"\nI don't find what you say nihilist at all @Alberto , and I agree with your observations. Education is above all a human relationship, in fact a proxy of parental relationships. And it works better when the involved humans are intrinsically motivated to pursue it. But there's one more aspect I would like to introduce in my mix: when dealing with teenageers peers are very important,\u00a0from a world where family and parents are the center they have to evolve to another adult disposition where partners and friends are the center and family can be grown. Socialization is the elephant in the room and teenagers are in no mans land, we are not attending to their needs in this regard.\n","comment_id":"25268","post_id":"6919","user_id":"9048","parent_comment_id":"25207","creation_date":"Thursday, November 3, 2016 - 11:45","group_id":"0"}},{"node":{"title":"Wondering...","content":"\n... if @ybe has found evidence of \"digital grieving\" in her work on trauma. Might this be a tool? Where the Trauma Tour is going there is going to be a lot of grieving...\u00a0\n@wishcrys\n","comment_id":"25267","post_id":"6884","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, November 3, 2016 - 11:28","group_id":"0"}},{"node":{"title":"Great stuff!","content":"\nWow, this is really really cool. Have you tried doing ethnography on it? @Amelia what do you think?\n","comment_id":"25259","post_id":"6936","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, November 3, 2016 - 02:02","group_id":"0"}},{"node":{"title":"I want to know about this too!","content":"\nHuh... @Aravella Salonikidou , I managed to miss that you are a councillor. So yes, I am very much looking forward to the whole story.\nIn\u00a0passing: I think we are looking at diversity trumps ability. When an activist-designer-manufacturer like you, a material scientist like @trythis and an open source hacker like @Matthias get on a task, it acquires incredible depth. I am reading your lists and thinking not only \"how generous!\" but \"how clever!\" and even \"wow, this is cool\". :-)\n","comment_id":"25258","post_id":"6926","user_id":"34","parent_comment_id":"25253","creation_date":"Thursday, November 3, 2016 - 01:29","group_id":"0"}},{"node":{"title":"What else is mutating?","content":"\nHey @steelweaver \u2013 thanks for this. I went back to your original post: it does explain how you changed your pricing model to adapt it to the CMAC's community. But here you are saying you are also changing the business hours, and even the way you treat.\nCould you be more specific, especially on the subject of the way you treat?\u00a0\n","comment_id":"25256","post_id":"6922","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, November 3, 2016 - 00:56","group_id":"0"}},{"node":{"title":"@ybe the wish was one of the","content":"\n@ybe the wish was one of the most important things in the backpack. We didn't send them without\u00a0the wishes. And it was so powerfull and emotional. You can't imagine what kind of wishes little kids can send! Most of the time my eyes were filled\u00a0with tears...\u00a0\nThank you for telling us about the poem. Amazing idea!\u00a0\n\u00a0\n","comment_id":"25255","post_id":"6926","user_id":"8957","parent_comment_id":"25240","creation_date":"Thursday, November 3, 2016 - 00:52","group_id":"0"}},{"node":{"title":"No, you didn't!","content":"\n@Noemi, thank you for mention @Matthias! I found his post very usefull. More pieces for my puzzle!\nAbout the ...hot stuff as an elected person I'll be back tomorrow. I think I have to explain a few things about the reality here in Greece.\n","comment_id":"25253","post_id":"6926","user_id":"8957","parent_comment_id":"25233","creation_date":"Thursday, November 3, 2016 - 00:22","group_id":"0"}},{"node":{"title":"Me too!","content":"\n@trythis thanks for adding items and tips! The list you see at the post it was only for the open calls. I prefered\u00a0 to keep it simple so the people could bring things from home as soon as possible. And something else important! Not asking questions! Most of the backpacks included more items and many of them prepared for adults so the list was different. When you gather things for the crowd it's more complicate than it seems. The people want to help but very often the misunderstand\u00a0 the announcements and they want to ask for details. About months I was on line (every line!) nearly 24h. For example they could understand why we asked for plastic crocs style (I avoided the word \"crocs\" and use the word \"clogs\" because many people thought I'm trying to advertise them). Especially for this, a woman from a \"...welcome\" team laught at me and insult me in public. She told me that these type is useless when crossing the european rivers and she refused to share the posts if i didn't ask for rain boots or athletic shoes. I wasted (or maybe not) about an hour to explain that this type of shoes are chosen because: it's easy to use them when you want to go to the bathroom at night, to wash your feet, to rest for a while when you have only one pair of shoes for walking, the are light weight, you can hang them out of the backpack, they are cheap e.t.c. So, you see, sometimes it's ....hard to explain...\nAnyway, the list I have in mind now it's going to be ...peace prepared :) So, I need every tip, tool, trick you know or imagine! We'll keep in touch!\n","comment_id":"25252","post_id":"6926","user_id":"8957","parent_comment_id":"25205","creation_date":"Thursday, November 3, 2016 - 00:15","group_id":"0"}},{"node":{"title":"Interesting!","content":"\nThere are some interesting \"social\" features here. I mean, a GPS is a\u00a0GPS, but I like the thinking around \"guiding\" the patient towards low anxiety when caregivers approach (they may not recognize them immediately in unfamiliar surroundings), etc.\nDid you manage to do a small test yet?\n","comment_id":"25247","post_id":"6841","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, November 2, 2016 - 18:25","group_id":"0"}},{"node":{"title":"Is this a sort of benchmarking?","content":"\nVery interesting, @wave . But there is something I do not understand: it seems you are going through similar projects done in the past and making a list of them. What's next? Do you want to modify and improve them? To make some and have visually impaired people in your own city try them?\n","comment_id":"25245","post_id":"6834","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, November 2, 2016 - 18:12","group_id":"0"}},{"node":{"title":"I am very moved by your story","content":"\nI am very moved by your story and I like the idea of including 'a wish' in every backpack so much. It reminds me of this project: https:\/\/www.facebook.com\/weshallstandforlove\/ of a fiend or me in Brussel: Dorothy Oger wrote the poem We shall stand for love in the aftermath of the Brussels terror attacks, and then the poem went viral and was translated in many many languages and now it is distributed for free on postcards with enough space to add a personal message;\nI allways have the poem with me to pass it on to friends, refugees,...\n","comment_id":"25240","post_id":"6926","user_id":"8959","parent_comment_id":"0","creation_date":"Wednesday, November 2, 2016 - 12:36","group_id":"0"}},{"node":{"title":"CPH","content":"\n@steelweaver, I really enjoyed your article. Your reference to denmark made me think of the The Emperor's New Clothes. Are we just renaming old stuff?\nId like to discuss Acupuncture more, \u00a0could it be integrated in a OpenCare - WeHandU approach?\n","comment_id":"25239","post_id":"6922","user_id":"8837","parent_comment_id":"0","creation_date":"Wednesday, November 2, 2016 - 12:30","group_id":"0"}},{"node":{"title":"Is there any kind of system in the world that could cope?","content":"\nTo your first question, I am not too optimistic. What we're seeing over and over again is that large scale responses needed in these crises situations mostly come about ad hoc and like in Greece, it's citizens who end up training themselves for preparedness. Matthis and co. for example set up this manual for disaster relief management. Is that what you have in mind, but more detailed?\nBut I am still amazed at\u00a0how you, as an elected municipal councillor in Thessaloniki, prefered to take a step with community as main asset rather than with instruments you had available in your office. Did I get it wrong?\n","comment_id":"25233","post_id":"6926","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, November 2, 2016 - 11:05","group_id":"0"}},{"node":{"title":"Teachers or newcomers into teaching?","content":"\nEnlightening take on technology education, I may be quoting you on twitter here and there, just a heads up :-)\n@Big Bang Schools might add something to this and what Alberto writes - given that they have experience\u00a0hacking\u00a0\"normal\" educational institutions but have also gone on to found\u00a0a new educational platform with its own type of schools and comprehensive framework. Angelos, I'm curious: which one did you find to be most needed or more effective?\n\u00a0\n","comment_id":"25227","post_id":"6919","user_id":"32","parent_comment_id":"25204","creation_date":"Tuesday, November 1, 2016 - 06:54","group_id":"0"}},{"node":{"title":"\"altruism is still there\"","content":"\nThanks for this piece, I am amazed at how optimistic you are @alkasem23.\nIf you can tell us more about the project \"Grace Conversation\" to share medicine in community it would be great. Or is there anywhere we can go to read about it?\n","comment_id":"25226","post_id":"6921","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, November 1, 2016 - 06:40","group_id":"0"}},{"node":{"title":"Probably a huge step for big changes for Malagasy people. ","content":"\nI know some friends who own small business like hardware store and probably interested about this @Noemi.\u00a0\nAs I mentioned in my article some of us still using woods and charcoal as a combustion. This inventory that @Matthias mentioned in Nepal looks great. It's can avoid a massive destruction of lives and nature.\u00a0\nActually there is no \"wasted garbage\" here in Madagascar, \u00a0there is no specific garbage for glass,paper or plastic here, no recycling program.\u00a0\nNowaday almost 8 of 10 Malagasy people are living under extreme poverty if \u00a0we refer to the UN statistics. In 4 years only, \u00a0a new cohort of population ( more than 24 %) was falling in extreme poverty. They search inside garbage and rubbish try to find some used bottle and stuff which still sellable. Statistically. It's about 5.6 million of people,\u00a0more than the people on the capital and some suburban areas. In general, about 18 millions of Malagasy have to get 4 000 Ar per day less than ~ 1, 25 $ \/1\u20ac according to the International Pauverty Line.\u00a0\nWhat does such a sum for these very poor household ? Since a kilo of white rice grew 1 200 Ar \/20 cent of euro \u00a0a bag of charcoal is about 20 000 Ar \/5 \u20ac, \u00a0the scholarship of a child for the 1St grade is about 60 000 Ar \/ 15\u20ac \u00a0even in public school this amount is including supplies and other overhead ...\u00a0Still, nothing concrete is well engaged to alleviate a little bit sufferings of this high proportion of the population.\nChange begin by everyone of us.\u00a0\n","comment_id":"25137","post_id":"6772","user_id":"8857","parent_comment_id":"0","creation_date":"Monday, October 31, 2016 - 21:08","group_id":"0"}},{"node":{"title":"fully agree with that","content":"\nfully agree with that sentiment. face-to-face produces something tangibly different but equally as powerful as shared 'head space' online\n","comment_id":"25220","post_id":"6388","user_id":"6559","parent_comment_id":"25188","creation_date":"Monday, October 31, 2016 - 19:35","group_id":"0"}},{"node":{"title":"The South side of Madagascar ","content":"\nThanks for your Idea @Nadia, water really Important for some people leaving on South of Madagascar. Where you \u00a0need to walk around 30 to 70 km to access to the \"nearest \"source, It's about 3 times\/year of raining. A place between desert and sea.\nThe government haven't find solutions until now.\u00a0\nPeople mix ashes with cactus for eating on dry season,donations and sanitation are more rare than raining in a year. The color of the collectable water is like mustard. Kids with big belly is not fat but undernourished or full of worms called \" tenia\",\"ascanis\".\nIt's really needs to get top water, some people pay 1\u20ac for one gerican (20 liter) only on market day for it. Teaching sustainable technics is an issue, for me it's a key to overcome this situation.\u00a0\nWith this Climate Change Impacts, there was a flood on that place a couple years ago, but people didn't think to store water ; We were occupied to save lives and giving hands to the survivors. As @Matthias says nature is impredictable, when it's come you can't prepare for it.\n\n\u00a0\n","comment_id":"25210","post_id":"6772","user_id":"8857","parent_comment_id":"0","creation_date":"Monday, October 31, 2016 - 05:39","group_id":"0"}},{"node":{"title":"The currency of attention","content":"\nI may have a nihilistic view, but it seems to me that there is no conclusive evidence for any educational method to be inherently superior to others. The typical story is this: young, smart, charismatic teacher becomes dissatisfied with how things are done in schools. He or she proceeds to start a new school that immediately outperforms the average existing school on all relevant parameters.\u00a0\nMaybe the methodology really did the trick. This, however, does not explain why\u00a0all\u00a0methodologies seem to work so well: Montessori, Steiner, Ecole 42, home schooling... So, here's another possibility: young, smart, charismatic people who care so much about teaching to leave a secure job to invent their own way of doing it are likely to be better than average\u00a0teachers. They would do well with\u00a0any\u00a0methodology.\u00a0\nThis would explain at least one case: that of the abandonment of the \"notionist\" paradigm in the West, supported by solid research results. Children schooled in the new way, more attentive to developing creativity and social skills, outperformed their traditionally schooled peers. But sure enough, 30 years later Western universities\u00a0were flooded by graduates from very traditional Asian schools, and they kicked the Westerner's asses to kingdom come.\u00a0\nIt does not make sense that creativity-oriented schooling is both superior\u00a0and\u00a0inferior to traditional cramming-oriented schooling. What's going on here could be\u00a0regression to the mean. If you generalize any methodology to the mainstream\u00a0you are going to get no more than average results, because this is what happens with average teachers teaching to average learners. I expect that the same will happen to generalized Arduinos in schools.\u00a0\n","comment_id":"25207","post_id":"6919","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, October 30, 2016 - 23:02","group_id":"0"}},{"node":{"title":"I'd love to discuss this some more","content":"\nI have a background in materials and engineering. I haven't done the trip but I spend time outdoors and walk some good distances with my little one, and often thought about the issue.\nI would probably add\/change (not necessarily for children though):\n- cordage (e.g. paracord, even dental floss or duct tape can vastly improve temporary shelter, duct tape or other adhesive doubles as band aid), some shock cord (elastic) can also be very helpful.\n- alcohol for desinfection (e.g. the hand wash gel type)\n- another space blanket (very little weight high utility especially with some how-to, also good as toy), with your background you might find a way to rig it into a jerven bag like thing.\n- pieces of sleeping pads, probably sized to be large enough to sit on when folded once, becomes more useful with cordage.\n- Power for phones: booster for charging from small batteries, buck (alternative) for charging from car battery (1 has enough for 200 phone charges), should probably be ruggedized e.g. by dipping in candle wax.\n- for kids a hand warmer can help out a lot in increment weather (single use)\n- at temporary camps a rugged bluetooth speaker could really help the kids unwind\n- maybe replace the gloves by more socks that can be worn on the hands as well\n- I would recommend 2 caps (beanies that go over the ear) if you have enough\n- some water bottles have a special kid friendly openings but attach to regular bottles.\n- In terms of shoes I think slightly oversize croc style (rooms for woolen socks, or maybe inner soles?) are the best minimum stress options.\nI am mulling over a system that lets you improvise a \"suitcase on wheels\" with sticks and cordage. The parts you neet to have of course are the wheels (ideally in pairs, anything from skateboard to scooter will work - they all have 6 mm inner diameter). So this or this would be needed on site. But the two screws that \"go in\" would have to be replaced by something like 5mm (I think) threaded rod, which would become part of the axle.\n","comment_id":"25205","post_id":"6926","user_id":"6534","parent_comment_id":"0","creation_date":"Sunday, October 30, 2016 - 19:42","group_id":"0"}},{"node":{"title":"Changes in educational methods","content":"\nI like this idea of neighborhood driven education. In my home town we are also planning a project in this direction, so I will follow these stories\u00a0with interest :).\u00a0\nThe correlation between how you teach and what a child learns and ultimately\u00a0which kind of person\u00a0it becomes is a hard one. There's so many different opinions on what is the best way of educating and each seems to have its merits. In practise there's already quite some alternatives - at least in Belgium - like Steiner and Freinet schools. My experience with those schools is limited and I have not seen miracles. How does\u00a0your philospophy\u00a0relate to the existing alternatives?\nLike @Noemi says, it's a hard case for radical changes. That's not necessarily a bad thing. There needs to be room for experiment, but education is important enough that we should\u00a0prevent major failures, even for a small group. The norm will shift slowly as educators themselves learn. I think it's that learning aspect that makes the difference. I hear the saddest stories while working with children. Usually it's\u00a0educators lacking insight in themselves and their practise, as well as a very static approach to their profession. They are factory workers: follow the protocol, complete the checklist, get good numbers.\nHowever, more and more\u00a0teachers accept change in the form of technological innovation because of this cult-like movement of STEM (Science Technology, Engineering, Mathematics) education that is now taking over. I shouldn't complain, I am\u00a0surfing that wave, but STEM has become\u00a0a goal in itself. The A of Art is also too often left out of STEAM. The general idea of technological disruption is already rooted in many people's heads, so it's a small jump for people in the educational system to apply it to their field. Lots of schools in Belgium\u00a0are implementing\u00a0smart boards, apps, school fablabs etc.\u00a0without much thought. Just new shiny tools, which in the end are not optimally used because there is no change in mindset. The teachers, the schools etc.\u00a0rely on technology to avoid changing their behavior. Ironic, because reality is the opposite.\nWe do new biology education and that is\u00a0our trojan horse:\u00a0we can hide a new method in the new technological content that we bring. This also means that these changes to the methods\u00a0won't be too radical. What we do\u00a0is accepted as a technological innovation, but hopefully the changes in method will\u00a0add\u00a0to the slow collective learning process on different methods.\n","comment_id":"25204","post_id":"6919","user_id":"8889","parent_comment_id":"0","creation_date":"Sunday, October 30, 2016 - 16:47","group_id":"0"}},{"node":{"title":"A way of caring for those remaining..?","content":"\nI have one such example and it seems that the more distant relatives or friends\u00a0posting are trying to support those closest \"in rank\", albeit from afar. It's almost as if trying to show that\u00a0they care, maybe for the same reason @Patrick Andrews mentioned - because they don't know how else.\u00a0\n\"(Mutual) aftercare\" is an interesting\u00a0word I will remember, thank you for introducing it.\n","comment_id":"25200","post_id":"6884","user_id":"32","parent_comment_id":"25046","creation_date":"Friday, October 28, 2016 - 19:47","group_id":"0"}},{"node":{"title":"Yup, we didn't talk about us:","content":"\nYup, we didn't talk about us: rookie mistake :-) (sorry about that) . And thanks a lot for all those interesting references, Noemi.\n@Altamirula\n","comment_id":"25199","post_id":"6919","user_id":"9050","parent_comment_id":"25197","creation_date":"Friday, October 28, 2016 - 14:24","group_id":"0"}},{"node":{"title":"Learning hubs far also in my opinion.","content":"\nOh, that explains you and Altamirula joining Edgeryders at pretty much the same time. Good to see\u00a0that\u00a0:-)\n@T\u00f3pio may confirm if they intend to focus on neighborhoods in the future - I can see why that may be a way to go if resources are scarce. Topio has been going on grant funding as far as I understand.\nI'd also like to ping @Octavia (friend of mine passionate about education) and ask her if she knows of autonomous learning hubs at neighborhood level?\n@RalucaN can you maybe tell the people here about how you guys are organising the Alternative Education Clubs for Roma children in\u00a0Bucharest\u00a0and if that's a model that can be\u00a0replicated for teens, broadly speaking?\n","comment_id":"25197","post_id":"6919","user_id":"32","parent_comment_id":"25196","creation_date":"Friday, October 28, 2016 - 12:10","group_id":"0"}},{"node":{"title":"@Noemi, schools becoming ","content":"\n@Noemi, schools becoming \"learning hubs\" looks like an idea close to what we aim to get with Future Tools, although in a different scale; our main demographic aim is neighboring.\nI personally deem that change (from traditional school to \"learning hub\") a very (veeery) long and complex process, as long as it depends for finding a successful output on the red tape labyrynth.\nAs for the potential spread of the experience, the thing is that if we get to shape a model of relatively easy implementation, chances of replication elsewhere by other people with similar concerns in education, youth and autonomous growth will probably increase as well, but that's something well long down the road.\nWe are working in Spain and the project -an idea @Altamirula has been maturing for a long time now- is at its very early stage; among other thing, we're planning small pilot experiences to test the project in a live SWOT analysis of sorts.\nT\u00f3pio has some similarities, the biggest elements of difference being the open, public location (we plan for indoor room) and the weaving of social fabric at both local community interactions and public space spheres (we'll focus on the first). But it seems to me that T\u00f3pio and FutureTools share powerful triggers to engage participants attention: they act \"plastically\" over close urban environment and we want to have them making with digital resources and learning through it.\n","comment_id":"25196","post_id":"6919","user_id":"9050","parent_comment_id":"25195","creation_date":"Friday, October 28, 2016 - 11:14","group_id":"0"}},{"node":{"title":"Already up and running?","content":"\nHello again, @Altamirula .\u00a0Your ideas about the future of learning seem more than reasonable to me, and in fact just yesterday I was at a conference where an educational policy maker kept referencing the idea of schools as learning hubs -\u00a0questioning how to get there. Those of us in the room thought\u00a0there's little hope for \u00a0a radical makeover, except maybe through public-private partnerships - if you do like TOPIO in Greece - the girls in Thessaloniki do neighborhood youth empowerment through artistic expression, pretty beautiful it seems, hav a look?\nWhat stage is Future Tools at, can we help in any way? Are you in Spain now? I can't tell from the post..\n","comment_id":"25195","post_id":"6919","user_id":"32","parent_comment_id":"0","creation_date":"Friday, October 28, 2016 - 10:23","group_id":"0"}},{"node":{"title":"Hi, @Ybe. Artistic fact doesn","content":"\nHi, @Ybe. Artistic fact doesn't seems to me, in itself, to be a method of self-healing. It can be used (or tried to) us such, not by the artist him\/herself, not form the artist's inner core perspective, but usually psychotherapy's point pf view. Theurapeutical use of writing (or painting, sculpting, etc.) might be an extraoridnary method of self discovery. But that's what truly helps in healing: to know why one experiences such a rough time in being alive (at a particular period in life or since one can remember).\n\nSo, when it \"fails\", the matter it's not about finding some better \"glasses\", but about not having been able to --to keep using your metaphore-- close one's eyes good enough and look inside. You probably know better ;-) than any of us that self discovery can be a pretty demanding, titanic and scary endeavour. \"Glasses\" might be useful (and it's wise to look for an expert opinion). But then again, it all depends on to which school of thought the psychotherapist subscribes; at the very least, so, there can be as much expertise as different schools. And there have been a number of them... (should we even pay attention to Viktor Frankl \"glasses\", for example?).\n\nOnly some people experiences the perception of some specific shade of a colour as something noticeable and worth expending effort to it (weather it's to enjoy it, if only for for some seconds, until our sense of sight degrades it or to try to recreate it on a canvas); only some \"hear\" words in his inner voice composing sentence after sentence after sentence to the extent of having the real need to take a pencil or a keyboard and write them as a poem or paragraphs of fiction; and only some react by feeling glad to be alive in an infinite universe when they hear some specific, complex combination of frequencies in the range of 50-20.000 Hz.\n\nBy \"outsider\" I didn't mean Kerouac-on-the-road-outsider, but different-to-his\/her-very-core-outsider (btw, not my choosing of word, but C. Wilson's :-)). Artistic impulse, IMHO, is not something everyone needs to use, nor as an expression of him\/herself, nor even as a \"better method of\" (although, as I said, it might be useful now and then).\n","comment_id":"25193","post_id":"6388","user_id":"9050","parent_comment_id":"0","creation_date":"Thursday, October 27, 2016 - 16:54","group_id":"0"}},{"node":{"title":"The traumatized self healing artist myth","content":"\nThe theory @ybe has contributted is a very accurate example of the destructive narrative I was talking about in the first place.\u00a0\n","comment_id":"25190","post_id":"6388","user_id":"9048","parent_comment_id":"0","creation_date":"Thursday, October 27, 2016 - 11:18","group_id":"0"}},{"node":{"title":"face to face","content":"\n\"I am not so sure that things get done in meetings\"\nHa. You may have a point there! :)\nI would say, though, that in my experience face-to-face meetings certainly produce different kinds of outcomes than just connecting online - there is a certain kind of trust, enthusiasm, or motivation to collaborate on projects that can suddenly emerge when a group who has only been connecting through screens suddenly share the same real-world space.\n","comment_id":"25188","post_id":"6388","user_id":"1915","parent_comment_id":"25179","creation_date":"Wednesday, October 26, 2016 - 14:17","group_id":"0"}},{"node":{"title":"This is much better than desalination","content":"\nBefore eventually tapping into desalination, it's best to do proper water management like in this example. Just let sun and rain do the desalination :) Plus, with proper forest cover, rainfall will increase as well, further decreasing the water shortage.\nIt's amazing how much ecosystems can be restored with just a few water management techniques: erosion control, soil buildup, aquifer replenishment. I was a fan of high-tech solutions like desalination just a few years ago, but became more and more convinced we better collaborate with nature where possible. A friend recommended me this documentary about ecosystem restoration on a massive scale (30,000 km\u00b2 in China).\nIt's not that humanity is out of solutions. The problem is, as always, about spreading knowledge and organizing collective action on a massive scale. That's why I like that @Michel focuses on the education part. Yet nobody has cracked the collective action problem yet (and not just because we're up against strong capitalist \"collective destruction\") \u2026\n","comment_id":"25184","post_id":"6772","user_id":"36","parent_comment_id":"25181","creation_date":"Wednesday, October 26, 2016 - 12:25","group_id":"0"}},{"node":{"title":"The Bhungaroo water manaement system ","content":"\nHad forgotten I met Biplab a couple of years ago. He was telling me about an approach they had developed for Gujarat (India).\nThe way it works is ver simple: they pierce the ground with thin funnels that \"suck in\" water from the surface and stores it in an underground reservoir (during the rainy season\/floods). So you don't get salt deposits on the topsoil which is the case if rainwater is left standing on it. During the dry season farmers use this reservoir of water to continue farming for up to eight months (according to Bipaul) after rainfall has stopped.\nThe underground reservoir can hold up to 40 million litres of rainwater.\n\n\n\n\n\" Drought is a serious issue in the western Indian state of Gujarat, particularly for underprivileged female farmers whose livelihood depends on the monsoon. Limited rainfall in the state leads to water logging in peak cropping season. For the rest of the year, farmers experience severe water scarcity. But thanks to a life-changing technology, poor farmers are now converting crises into opportunities. Bhungroo is a water management system that injects and stores excess rainfall underground and lifts it out for use in dry spells. \"\nPerhaps the schools could be a good distribution centre, including the building of these reservoirs as part of the childrens science education. Not giving the solution but having them figure out how to do it, with local materials etc. And then teaching their parents and others in the society. @Michel what do you think, could this work?\n","comment_id":"25181","post_id":"6772","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, October 26, 2016 - 09:12","group_id":"0"}},{"node":{"title":"The thing I like most about the Trauma Tour","content":"\n..is that it lowers the barriers to this type of knowledge. It\u00a0is about learning\u00a0and starts with conversations, not therapy, which sounds much heavier and almost like you have to be a \"patient\" or close to one\u00a0to access it. Who wants to be a \"patient\"\u00a0and can walk in confidently? Probably very few people, or not even those who need it the most.\u00a0Even the word \"trauma\" is so heavy that I can see how a friendlier setup and human face can help break the ice. Don't know if it's a strict deontological choice, but you might want to try an experiment where you dont use the word at all in your communication (for example for an event), you'd only use \"pain that doesn't go away\" or something..Then you explain the proper terminology while at it. Who knows, maybe you get even better results.\nThank you for working on this piece Ybe. Quick heads up: your link to the list of things we can help with does not work.. so waiting. With @Nadia and a little luck we might meet you in Greece in December!\n","comment_id":"25180","post_id":"6913","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, October 26, 2016 - 09:04","group_id":"0"}},{"node":{"title":"Echoes","content":"\n@steelweaver , I just wanted to say that your\u00a0piece on introverts is highly reminescent of @trythis 's own thinking around the same matter.\u00a0\nMe, I am not so sure that things get done in meetings, nor that real world meetings are more likely to lead to real world actions. But your point stands: collaboration environments that are friendly to introverts are a good thing.\n","comment_id":"25179","post_id":"6388","user_id":"34","parent_comment_id":"25153","creation_date":"Wednesday, October 26, 2016 - 00:29","group_id":"0"}},{"node":{"title":"Not aware of any silver","content":"Not aware of any silver bullet re desal. Different options exist but most need lots of energy. Check Australia for viable approaches. The may be less centralzed options using air dehumidification (israeli tech?). You can also evaporate and chatch the \"distilled\" water - but you still need lots of energy (which possibly could come from desertec style overproduction). So instead of charging batteries you charge your cistern. Another issue is cost effective and clean transportation\/distribution. There is a reason mankind mostly spread along rivers for a very long time. ","comment_id":"25176","post_id":"6772","user_id":"6534","parent_comment_id":"25169","creation_date":"Tuesday, October 25, 2016 - 18:10","group_id":"0"}},{"node":{"title":"view of a psychotraumatologist ;-)","content":"\nWhat an interesting discussion, thx to you all. I agree that stress and suffering are part of life @Noemi @odin @Alberto, that stress to some degree even make us thrive, grow @steelweaver. But in the end stress should not become bigger than our coping skills, it should not be overwhelmingly disturbing.\u00a0\nIn general, I think of art and creativity as an expression of oneself, an expression of our inner world, our 'being' in the world, our being 'me'. Being authentic is by definition being different from others and thus coping with judgment,\u00a0 the others , the outer world goes along with it.\nBut I also think that feeling different, an outsider, more sensitive than others, etc etc .. is often a 'symptom' of trauma, a result of not having our needs met in the past f.ex, wich often results in losing our own connection with our needs, our connection with ourself.\u00a0 This disconnection is trauma, the residu of pain. In my vision many artists are trying to 'heal' themselves through their art - redefine themselves, trying to find a way to become 'whole' again - integrate pain and trauma. Artists are often 'self-healers', they are their own therapists.\nWhen the self-healing fails, they might consider exploring the pain and trauma trough different glasses - those of a therapist. Thinking out of the box could help them cope better :-)\nThis is the more or less classic, freudian, psychological explanation for 'artistic pain'.\nThere is another explanation though, one that is defended by one of the founding fathers of expressive arts therapy S.K. Levine : that art is the expression of our soul, our 'acorn', that we are born with a 'mission', something we want to express, and that the struggle to discover and express this acorn, this individual mission causes pain. Levine thinks we overfocus on pain and trauma caused by environment\/youth\/parents... We should instead in therapy look more for 'the inborn authenticity, the inborn self'.\n(If interesetd in this latter explanation: See Stephen K. Levine: Trauma, Tragedy, Therapy: the Arts of human suffering (quite a philosophical, demanding book - but very interesting out of the box view for therapists ;-))\nHope this helsp as a theoretical frame @Pauline\nYbe \n\u00a0\n","comment_id":"25175","post_id":"6388","user_id":"8959","parent_comment_id":"0","creation_date":"Tuesday, October 25, 2016 - 17:46","group_id":"0"}},{"node":{"title":"\"Gaza man Fayez al-Hindi has","content":"\n\"Gaza man Fayez al-Hindi has created a small rooftop mounted device that can produce about 2.6 gallons of clean water per day\"\nwww.youtube.com\/watch?v=fJ1NCW5eDNs\n\n\n\n\n","comment_id":"25170","post_id":"6772","user_id":"45","parent_comment_id":"25169","creation_date":"Tuesday, October 25, 2016 - 12:06","group_id":"0"}},{"node":{"title":"I came across a REALLY long article full of advice","content":"\nI read that one of the most pressing issues is the water crisis. Before anything else can work I suppose this is one key issue that needs to be addressed. A question is if there is a cheap desalination technology that could be applied at scale in one area, and then build on that. I'm asking around, but perhaps others. @trythis might know?\nRecently I came across an article that points out a lot of practical advice for building livelihoods. But most of it is probably not applicable outside the US\/Europe. That said here it is:\nhttps:\/\/www.linkedin.com\/pulse\/70000-per-year-start-now-kevin-pezzi-md\n","comment_id":"25169","post_id":"6772","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, October 25, 2016 - 11:21","group_id":"0"}},{"node":{"title":"I'm less of an expert than you, but","content":"\nMaybe @HKaplinsky or @iamkat might be able to add to whether there is an overdose of angst in European artistic thought, practice, socialization.\nI've also invited an art curator friend of mine to join the discussion, and see what she makes of this.\nI'm sorry about your dear one. I wonder: if this is so generalized, what support systems are out there for artists then? do artistic collectives or platforms have a contribution to make here or rather more diverse social environments?\u00a0\n","comment_id":"25165","post_id":"6388","user_id":"32","parent_comment_id":"25162","creation_date":"Tuesday, October 25, 2016 - 10:12","group_id":"0"}},{"node":{"title":"This article on Time explains","content":"\nThis article on Time explains how women access abortion in Ireland - basically, same as in Poland. It also adds an interesting research on how women feel about abortions after performing them.\u00a0\n\u00a0\n\"Ninety-four percent of the 1,023 women who completed the at-home abortion said they felt grateful for the option, 97% said at-home mediation abortion was the right choice for them, and 98% said they would recommend the option to other women with unwanted pregnancies.\nWhen asked about their feelings after completing the abortion, 70% of the women said they felt relieved, which was the most common sentiment expressed, followed by 35% who said they felt satisfied.\u00a0\n\u201cWhat I think is most striking is that women reported these clear benefits for their health and wellbeing and anatomy,\u201d says Aiken. \u201cI think it really demonstrates that women can make the best choice for themselves when it comes to their own reproduction. The only negative thing about this is that women reported they had to do it against the law, and they went through considerable stress and anxiety and secrecy and isolation and shame.\u201d\n\u00a0\n","comment_id":"25164","post_id":"6901","user_id":"678","parent_comment_id":"0","creation_date":"Tuesday, October 25, 2016 - 10:02","group_id":"0"}},{"node":{"title":"HI\u00a0@noemi, sorry it took me","content":"\nHI\u00a0@noemi, sorry it took me so long to answer you, I've been traveling. I was trained as an sculptor in Madrid in the '90s and I found\u00a0artistical education to be deeply rooted in a tradition of irrationality that can be traced to the romantic movement in the 18th century, what is generally presented as the reaction to the enlightenment.\u00a0I knew I had had enough when a\u00a0very dear person to me committed suicide. I've had the chance to study and live in the states and in Canada and my experiences in those cultural environments helped me understand other ways to address artistical activities, in a more positive and balanced way.\u00a0While in Boston I had the great luck to find a sumi-e master that introduced me to the practice of Japanese brush painting, yet another approach to art that includes irrational thought without the angst. I have never developed a theory on all this, but my observations on how the individual artist relates to the society in the different cultures, what is expected of the creative role\u00a0and how we teach art\u00a0leads me to think that we in Europe need to overcome this tragical\u00a0tradition. I wish I could give you more to pull the thead, I really am no expert!\n","comment_id":"25162","post_id":"6388","user_id":"9048","parent_comment_id":"0","creation_date":"Tuesday, October 25, 2016 - 00:02","group_id":"0"}},{"node":{"title":"Welcome","content":"\nHello @Michele C , thanks for sharing this.\u00a0\nHowever, it looks like you copy-pasted some kind of promotional text, so that it can be hard for us to understand what's really going on behind the scenes. On the face of it, this can look\u00a0like a holistic post-school care for rich kids. Can you tell us more as to which care needs you were trying address? Who are your, uh, clients I guess? Why did you feel this was needed?\n","comment_id":"25155","post_id":"6787","user_id":"34","parent_comment_id":"0","creation_date":"Monday, October 24, 2016 - 15:26","group_id":"0"}},{"node":{"title":"Sensitivity and emotional processing","content":"\nFascinating thread.\nOne question that strikes me is: shouldn't this be precisely what art school is about? Providing the freedom to engage deeply with such practices, to experience the emotional fallout of an intense creative life before a job or a commercial project is hanging in the balance?\nCertainly, this is something you will see at certain drama schools, who combine aspects of psychotherapy with learning to be a good performer - treating the education period as a time to process all the emotional material that surfaces from engaging in the creative practice.\nPerhaps just being given permission to experience these things and making space to check in with each other and have collective discussion about what is coming up would go a long way to avoiding people feeling that processing emergent emotional material is somehow wrong or unbalanced.\nThis all also reminds me of how important it has been in recent years that people with 'non-ordinary' mental constitutions have been able to find each other and build a sense of solidarity, from which they can begin to try to educate the 'normals' about their own unique experiences:\nWhether that be artists, introverts [and see also my piece here], Highly Sensitive People, Mad Pride or autistic people lobbying to be accepted as a neurological minority.\n","comment_id":"25153","post_id":"6388","user_id":"1915","parent_comment_id":"0","creation_date":"Monday, October 24, 2016 - 15:05","group_id":"0"}},{"node":{"title":"Charlie Murphy(RIP) got the answer!","content":"\nPlease take a look here https:\/\/www.linkedin.com\/pulse\/prince-social-artistry-adam-rosendahl?published=t\nIf you have the time read about the tools he used to do it! I'm glad because I had the chance to participate in his workshop in Thessaloniki. It was amazing that more than 60 strangers we became almost friends in less than 3 hours. We've been dancing, write stories, singing, play music, theater, tell secret stories(!) to each other and many more. I hope we can find details at his book. Personally, I remember a few tricks and I can talk about these if needed.\n\u00a0\n","comment_id":"25150","post_id":"6225","user_id":"8957","parent_comment_id":"25124","creation_date":"Monday, October 24, 2016 - 14:17","group_id":"0"}},{"node":{"title":"It's okay, there wasn't\u00a0a ","content":"\nIt's okay, there wasn't\u00a0a \"launch\", only Version 1, which went quite badly, and we learned a lot. Version 2 went much better. We'll see how Version 3 goes tonight. By the time you make it along, Noemi, it will be a well-oiled machine ;)\nYes, our\u00a0design challenge is to create an \"introvert-friendly social event\", so that everyone finds it easy to meet new people, and connect more deeply than just small talk. You'll notice that we don't reveal too much about that in the marketing, because it sounds a bit lame. Our marketing angle is more \"a different kind of party\", and then we make it clear from the imagery and branding that it's\u00a0far more fluffy than your average nightclub.\nThere are plenty of activities that can lead to this kind of connection, I agree that it's just a pretext. It's more the\u00a0way of designing and facilitating the event that's important, rather than what people are actually doing. Well done for organising the food waste dinner (we\u00a0would have come if it wasn't sold out!). We just opted for something that's logistically much easier, without needing to find a big kitchen or anything. We just borrow a small cafe, take a few pieces of paper and a couple of lamps and that's about it. I like the idea of a \"higher purpose\", but in this case I think it will just be promoting 'deeper human connection' rather than anything more worthy. I'd like it to be as casual and normal a choice as going to a noisy bar with your friends. Just better.\n","comment_id":"25149","post_id":"6225","user_id":"8816","parent_comment_id":"25148","creation_date":"Monday, October 24, 2016 - 14:06","group_id":"0"}},{"node":{"title":"Most probably one of next ones!","content":"\n\"A social experiment for the mind and soul\" niceee :-)\u00a0I managed to miss the launch events, probably have evil facebook algorhytms to thank.\u00a0Anything that came out of them which is encouraging so you want to do them this regularly? I remember what you wanted is to reach people who, like @Odin here is saying, are not naturally inclined\u00a0to connect with strangers.\nWhat's interesting about Makuma is that you @orangejon are a newcomer in town\u00a0and the one who initiated them.. that says something about those who live in a place for too long to make new original things happen. or not.\nre cooking - I think you need a pretext that doesnt scare people off. this weekend for example we organised an anti food waste community dinner and it was easy to get 50 people in because it had a purpose. More empahy and intimacy can be scary if you promote it like that.. but this is just me,\u00a0let's just say those who did it may know better.\n\u00a0\n","comment_id":"25148","post_id":"6225","user_id":"32","parent_comment_id":"25143","creation_date":"Monday, October 24, 2016 - 12:56","group_id":"0"}},{"node":{"title":"What's your story?","content":"\nHi @Altamirula, nice to meet you. Can you expand on this point about cultural differences? \u00a0\nHave you worked in Japan or experiencedvarious situations directly, or is is something you've read about?\u00a0\nInterestingly,\u00a0I wasnt paying too much attention to the question Pauline first addressed in this post, and yet seeing confirmations from such\u00a0personal points above makes me wonder indeed if there is something more to explore here. If you have ideas on how we can\u00a0frame this question of different emotional responses even more specific to the art world, we can\u00a0launch a challenge so that we can bring more domain insights. Let me know, I'd be interested.\n","comment_id":"25146","post_id":"6388","user_id":"32","parent_comment_id":"25126","creation_date":"Monday, October 24, 2016 - 09:53","group_id":"0"}},{"node":{"title":"What to say? It's really difficult \u2026","content":"\n@Michel this looks like a very dire situation in Madagascar :-( I'm glad the business ideas list provided some inspiration, but you'll have to see how much impact DIY business ideas can have on poverty at first. I did not go ahead with any of these ideas in Nepal because @Dipti Sherchan advised me that in her country, ideas involving new technology will have a hard time to be accepted in the villages. Something like a DIY backup system with used Li-Ion batteries is just over their heads, for example.\nInstead, the EDGE Academy (\"pocket university\") concept that @Alberto mentioned came up (it is here by the way). It's about providing the education that will later enable citizens in Nepal's countryside to solve their other issues by themselves, including with new appropriate technology like the ideas from my list. I still really want to implement the pocket university in a large scale, but have not yet found a funding partner for the project so far. So for the start, there will be just a coffee growing course in combination with a project for international direct sales for Nepali coffee. (Edgeryders LbG provided some seedfunding for that project.)\nPerhaps you know of agricultural and \/ or handicrafts products from Madagascar that are interesting for export to Europe (storable, high value per weight)? I can tell you what we have found out about direct sales of food items from Nepal to Europe. Customs etc. is very doable, and revenues for farmers will be about 200% of what they get in the traditional trading system (and even that is very high for coffee because Nepali coffee is traded as a specialty \u2026 so it can be a 400-500% improvement for some \"more ordinary\" coffees from around the world). Let me know if you want any more infos on that.\n","comment_id":"25144","post_id":"6772","user_id":"36","parent_comment_id":"25137","creation_date":"Monday, October 24, 2016 - 04:12","group_id":"0"}},{"node":{"title":"Makuma - the connection games","content":"\nSure, I'm happy to share what I'm up to here in Cluj Napoca if people are interested. Diversity isn't a particular goal of what we're doing, but connection is. I'm simply trying to create an environment that is conducive to strangers getting to know one another. Cooking together is a nice idea, but logistically difficult to organise. We're just playing pair and small group games to build trust within the group, then people pair off and answer thought-provoking questions and do non-verbal challenges that involve physical contact or prolonged\u00a0eye contact, to build intimacy. We kept it simple so that we can get going and learn as we go. We've run 2 events so far and will run the third on Monday (I hope you can come Noemi!). They've been pretty successful so I'll probably run them every week. You can see a video on our Facebook page, and feel free to ask any questions.\n","comment_id":"25143","post_id":"6225","user_id":"8816","parent_comment_id":"25124","creation_date":"Monday, October 24, 2016 - 02:48","group_id":"0"}},{"node":{"title":"Resurrecting an old post","content":"\nI saw your post after recent activity on this thread @Alberto... I was wondering if\u00a0you have read anything about rites of passage in more detail? What is the aspect that creates stronger cohesion?\u00a0Is it the selection process and 'insider vs outsider' dynamic,\u00a0is it the sharing of pain and hardship that creates stronger connections between individuals, maybe another reason?\nI'll recommend this book as well for everyone who is interested in the topic.\n","comment_id":"25139","post_id":"6225","user_id":"8889","parent_comment_id":"23590","creation_date":"Sunday, October 23, 2016 - 18:28","group_id":"0"}},{"node":{"title":"No, I can't say I have. More","content":"\nNo, I can't say I have. More than as an experiment, I've thought of it more as a simple mix of very common situations anyone is usualy familiar with and create a nice excuse to gather people for them to interact, just for a while and with the aim of make spring an empathic \"trend\" among the particpants. I thinlk it's easy enough to make a concrete proposal, without the necessity of telling much about it: \"\u00bfCould you have a fun time cooking with some people you haven't met? The recipe is easy, you all can taste and enjoy it afterward, and then, if you all feel like it too, play charades for a little while?\"\u00a0\nI'm not a \"kitchen dweller\" myself, but this sort of \"cooking worshop\", if brief and free of technical complexities, is fun to experience, as long as the tasks in the team are well distributed (so everyones does something); the fun is not only in cooking, but in cooking with someone.\nMoreover, after we eat -even a little meal- we feel better, we step into a mood which set us up to be prone to enjoy things around (because we feel positive, relaxed... you name it).\nThe final game would be a coda of sorts, certainly as long as the previous phases (cooking, eating) would have been successful. As the bodily experience of feeding, the one about laughing implies safety, an experience it not in isolation but shared with others increases the pleasure of such\u00a0 experience. Those are some of the well known basics -at the positive side- in the overall experience of being human.\nWe could conceive a similar experience based on fear (e.g., a threatining scenario in which the teams have to \"survive\" against each other, TV is plagued with that kind of shows), but I'm guessing that's not what @makerphil had in mind :-)\nAlso, I thought of an altogether strange group of people, for which the bigger obstacle would be not sharing a common natural language. And that adds for a layer of complexity that would not be present otherwise.\n","comment_id":"25127","post_id":"6225","user_id":"9050","parent_comment_id":"25124","creation_date":"Saturday, October 22, 2016 - 14:44","group_id":"0"}},{"node":{"title":"Cultural approaches","content":"\nMy own experience with artistical education and the myth of sensitivity and creativity being linked to madness, depression, angst,\u00a0is a sad one. I have found some solace and the begging of an understandment\u00a0of the issue in the cultural differences between Europe, USA and Japan in this respect. The role of the artist and the way art is socialized varies greatly when you compare these traditions and to our shame Europe exhibits a very self-destructive narrative to live by. Maybe that could be a meaningful starting point to unravel the question, I hope it helps.\n","comment_id":"25126","post_id":"6388","user_id":"9048","parent_comment_id":"0","creation_date":"Saturday, October 22, 2016 - 10:39","group_id":"0"}},{"node":{"title":"The 58 ideas for businesses in Nepal might be worth looking into","content":"\n@Michel do you have friends involved in running their own small shops or local businesses? You might enjoy this inventory if only for being inspired - from dry toilets to recycled plastic materials, to low energetic household items.. great stuff. Also courtesy of\u00a0@Matthias .\n","comment_id":"25125","post_id":"6772","user_id":"32","parent_comment_id":"24576","creation_date":"Saturday, October 22, 2016 - 09:02","group_id":"0"}},{"node":{"title":"Someone else who might want to chip in","content":"\n@Odin have you tried this at home, so to speak? Did you ask people how they felt after?..\nMyself, I'm weary a little bit of experiments if too little is being told, but my friend @orangejon is trying to work out similar dynamics in diversity and last I heard he was working with a team of young psychologists to engineer these kind of experiements. Maybe you can tell more about them?\n","comment_id":"25124","post_id":"6225","user_id":"32","parent_comment_id":"25118","creation_date":"Saturday, October 22, 2016 - 08:54","group_id":"0"}},{"node":{"title":"My ten cents, makerphil:","content":"\nMy ten cents, makerphil:\n\nGather your \"different cultures, backgrounds and interest\" group and let them know it's not an experiment, nor a race, nor a test - just preparing a meal and share some laughs.\nPut them in a comfy place (modest, improvised, in the street or a bulding, whatever... but comfy: safe, not cold, not hot).\nDress them with the same clothes (garment and shoes), without any complements that can show up social, cultural or any other feature of differentiation (hats, earings, make-up, etc.).\nPut them two by two and make them cook some simple, easy meal, following instructions made with drawings (without alphabetical inputs).\nThen mix them up and let them taste and enjoy each other meals (the recipes must be so simple that eating them take very little, otherwise you'll have a bunch of strangers that cannot talk about anything while they eat).\nAfterwards make them play some game, free of any cultural or linguistoic bias (like that one anglosaxon people call \"Charades\"), for as long as every couple of them have had their turn (you'll have to trick this too a little, by choosing carefully the elements to be guessed in order for them not to be subject to cultural, linguistic handicaps: no movies, no books, but basic universal things)\nAnd let them go\n\nIt's something more than just a moment, and it needs a bit of budget and planning, but you a) eat, b) meet new people, and c) have fun :-)\n","comment_id":"25118","post_id":"6225","user_id":"9050","parent_comment_id":"0","creation_date":"Friday, October 21, 2016 - 18:22","group_id":"0"}},{"node":{"title":"Like that","content":"\nI could not agree more, @Odin . It's good to look for happiness, but we should probably not try too hard to be happy all the time,\u00a0and then get stressed because life is not perfect.\u00a0My mother, who was a child during World War 2 in an invaded country (the North of Italy), struggles to understand depression. \"Everyone is sad sometimes\", she says. For her, \"burnout\" is a medicalization of exhaustion, and \"depression\" is a medicalization of sadness. Both exhaustion and sadness are, occasionally, part of any normal human life. She may be going too far, but there's something there.\u00a0\n","comment_id":"25114","post_id":"6388","user_id":"34","parent_comment_id":"25112","creation_date":"Friday, October 21, 2016 - 16:40","group_id":"0"}},{"node":{"title":"Thanks, Alberto.","content":"\nThanks, Alberto.\nYour words, \u00abdoing something right under difficult conditions\u00bb, are at times part itself of other word well known to all of us: \u00abLife\u00bb :-) I don't thing it properly fits under the concept of healthiness... but, as they say, it is what it is. Effort against some times very displeasant contexts is part of the trade.\nWe human beings even project that in our planetary-astonishing cultural and literary heritage, in the very basics of it: there is no story without conflict. Sometimes it's tough love, but only sometimes.\nAnd, yes, if one overcomes the difficulties gets not just one but two prices. First the inmediate one: pride and endorphins right at the achievement of the direct intent (finishing the race, in your example); second (and most important in the long run): knowledge and skills to be well more prepared for the next conflict\/challenge\/surprise, for as long as we are alive, there will be another one.\nPain -of any kind, under any circumstances and undergone by any living creature- it's something that, as beings equipped with intelligence and empathy, we should thrive to extinguish. As long as we are human (or humanely this way), however, it's going to be there and so we must know how to deal with it.\n","comment_id":"25112","post_id":"6388","user_id":"9050","parent_comment_id":"0","creation_date":"Friday, October 21, 2016 - 13:24","group_id":"0"}},{"node":{"title":"Some start! ","content":"\nHello @Odin , and welcome to Edgeryders and the opencare conversation. Well, that was a great start to discussing with you, thanks!\u00a0\nIf I understood you correctly, you are saying that it is normal to suffer a certain amount of distress for a creative person navigating a difficult environment. And it seems to me that most environments are at least in part difficult, so... do you mean to say that a certain amount of distress is normal, healthy even? That it indicates that you, the sufferer, are actually doing something right under difficult conditions? It would be like the kind of pleasure-pain of the long-distance runner approaching the finishing line: she is in discomfort, but she has learned to re-interpret that discomfort as a signal that her body will finish the race with no permenent damage, and that it even has still a final sprint to give.\u00a0\nAlso ping @Pauline\n","comment_id":"25105","post_id":"6388","user_id":"34","parent_comment_id":"25104","creation_date":"Thursday, October 20, 2016 - 20:56","group_id":"0"}},{"node":{"title":"A very classical one, this","content":"\nA very classical one, this discussion , Pauline :) (also ancient - Solomon: to know is to suffer). I reject the idea of suffering as a condition to intelligent expression (or creativity), but I see it as a symptom. And not as much of being in a wrong path, as of not being able to find one's own \"land\" and so living under the coercion of walking every day but not as one truly knows how to walk.\nIf you walk the best path you can set up for yourself (and in the best possible way you're able to develop) in an obstructive environement, you'll probably wind up in a pretty ugly situation: let's just remember Van Gogh, Nijinsky, T.E. Lawrence, Nietzsche, Dostoyevsky's \"monsters\" (I can't stress enough those quotation marks)... And\u00a0 no doubt hundreds of thousands of unkown others.\nA different perspective to see people with a highly intense aptitude to see, feel and experience what most people simply doesn't realize it's that... They're simply different, although (here's the trick) not aware of it. One of the best reads I've stumbled upon about this topic is Colin Wilson's The Outsider.\n","comment_id":"25104","post_id":"6388","user_id":"9050","parent_comment_id":"0","creation_date":"Thursday, October 20, 2016 - 19:13","group_id":"0"}},{"node":{"title":"Direct contact is safer! ","content":"\n@ybe, in case @OrangeHouse misses the notification, better contact them through their Edgeryders profile (allows them to be contected without disclosing their email address). GO here:\u00a0https:\/\/edgeryders.eu\/en\/users\/orangehouse and click on the \"Contact\" tab.\n","comment_id":"25100","post_id":"6754","user_id":"34","parent_comment_id":"25085","creation_date":"Thursday, October 20, 2016 - 16:09","group_id":"0"}},{"node":{"title":"On communities, unwanted pregnancies and laws of large numbers","content":"\n@Matthias and all, the Amish story points rather to the fact that communities\u00a0do\u00a0go for prevention, at least in some cases, and in a way that no health system does. @Lakomaa thinks this is because in modern care system, the entity receiving the care and the entity paying for it are always separate: sick person vs. taxpayer for state provision, insured-insurance company for private sector provision. So, it is always privately optimal to dump the cost of healing onto others, rather than assume the cost of prevention oneself.\u00a0\nSeen through this lens, community provision is fundamentally different, because the entity receiving the care is not an individual, but the (sub-Dunbar or equivalent) community,\u00a0and that's the same as the payer.\u00a0Hence the apparent lack of market failure in care provision among the Amish.\u00a0\nSo what's going on with prevention of unwanted pregnancies? Public health people I have talked to tend to shrug and say it's endemic. The window of opportunity for stupid and careless behaviour\u00a0is a little too wide, the drive for instant gratification over prudence is literally a biological imperative, and even the best contraceptives only have a 99.99% effectiveness. If, say, in Italy you have about 20 million couples, if 10% of them are having sex tonight and all of them use contraception, you are going to get 200 unwanted pregnancies tonight,\u00a0in just one European country. Best you can do is reduce the incidence of such incidents, but no human society ever achieved zero unwanted pregnancies.\u00a0\n","comment_id":"25095","post_id":"6901","user_id":"34","parent_comment_id":"25091","creation_date":"Wednesday, October 19, 2016 - 22:00","group_id":"0"}},{"node":{"title":"AC maintenance and repairing","content":"Mr. K. Bokamoso has rich experience in repairing and maintenance of air conditioning systems, and he is known to provide customer-friendly services in the city of Johannesburg. ","comment_id":"25093","post_id":"6547","user_id":"9047","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 20:12","group_id":"0"}},{"node":{"title":"Elder care and big generations","content":"\nMy 1945-1960\u00a0\"boomer\" generation is now heading into retirement, fixed incomes, scant savings and other common attributes. \u00a0This has always been the case with elders as a whole, but with my generation and my kids' equally large \"millenial\" generation, the sheer numbers of people needing care are about to go sharply up and remain there for decades.\nIn the USA, the fabled land of plenty where you are free to succeed and also free to fail, statistics show that the average life savings of my generation are barely enough to sustain them (us) for a year in anything like the standard of living now enjoyed. \u00a0And that stadard is lower already than our parents' WWII generation that was both smaller and wealthier, with a vastly larger middle class. \u00a0Then\u00a0what will become of everyone? American Social Security is robust now but without a lot more\u00a0care and feeding from a unified nation,\u00a0it won't stay that way. \u00a0And the cost of urban living is going up fast all over America. \u00a0Sending seniors out to the country where the health care is worse and one has to drive everywhere isn't an answer.\u00a0At least seniors in the USA have Medicare, but that alone won't cover the total cost of health care. \u00a0\nI think we are going to see a shift towards the generations recombining inoto\u00a0households and compounds in the coming years. \u00a0The \"generation gap\" that very much existed for my generation and my parents was, and still is in a way, much greater that what we see with my gernation and my kids. \u00a0I have four kids, all well into adulthood. \u00a0Two of them let me know regularly that they are open to us combining households in later years. \u00a0Getting my own mother to agree to such a thing with me or my brothers is like pulling teeth.\n","comment_id":"25092","post_id":"6870","user_id":"8169","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 18:38","group_id":"0"}},{"node":{"title":"Can P2P create preventive solutions?","content":"\nWhile this story documents the power of underground networks to find pragmatic solutions, I am wondering if and why \"P2P care\" solutions do not equally pop up to create solutions through prevention (that is, preventing the pregnancies in the first place)? It could be that P2P solutions have a problem with collective motivation here, just as governments tend to rather react that act proactively, but more severe since P2P \/ underground solutions are so resource constrained. If so, that could point to a major issue with all P2P solutions into care (that is, making for a nice research focus).\nI'm pretty sure there is common ground to say prefentive solutions are preferrable (assuming that women who are undergoing abortion would have preferred not to, that is, not to have become pregnant in the first place). So, no need to refer to laws or morals. Even if the law allows it, there is still reason to prevent pregnancy.\nSo even though contraception is widely available in Europe, on a society scale there are still this many unwanted pregnancies. What I'm wondering here is about the reasons for this, and what P2P initiatives can do and are doing here? Of course this will have to do a lot with slow-changing \"fuzzy targets\" like culture, taboos, sexual practices and preferences. A crazy story from Nepal about how all this impairs the use of \"normal\" contraceptives among the young generation is this one (Natalia found it some time last year). But in Europe \u2026? What's going on here?\n","comment_id":"25091","post_id":"6901","user_id":"36","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 18:24","group_id":"0"}},{"node":{"title":"Communities to the rescue! ","content":"\nThese stories are quite ghastly. The silver lining is that communities tend to step into giving\u00a0care, and to do so more when the care problem is \"close to home\". In the end, reproductive health and control over one's body are an absolute, so prohibitions don't work. People go underground, organize informal networks, and things happen anyway.\u00a0\nAnd this means that, maybe, a good way to do public policy on care is just to let people free to provide for each other, then step in to help with those which are obviously the most pressing concerns, such as this one. Concerns are revealed by the efforts put into addressing them, even when that means breaking laws and running the risks associated with it.\u00a0\nOf course, my remarks refer to a theoretical world without politics, where all decision makers are serene, evidence-oriented and well-meaning. :-)\n","comment_id":"25090","post_id":"6901","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 17:17","group_id":"0"}},{"node":{"title":"\"solidarity\"","content":"\nThis is a fascinating project. \u00a0I have alerted a close friend, an American journalist who has done important radio and print reporting on the refugees in Greece, to come have a look at this topic becfause of this specific project and because of the networking going on in this conversation.\nOne question: by \"solidarity\" do you mean a formal association or something more loosely arranged through a kind of self-identification?\n","comment_id":"25089","post_id":"6890","user_id":"8169","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 16:30","group_id":"0"}},{"node":{"title":"Choice is important","content":"\nInteresting to read you John, I know a couple of those who want to stick to their freedom, and that sounds understandable. I guess what matters is self determination and individual health, and if that is found separate from coliving in family that's just how it is.\u00a0The impossibility\u00a0seems to be\u00a0in our inability to provide deeper care when people fall through the cracks -\u00a0if someone is forced to change their life to adjust to scarcity, whether the ill, old or the caretaker her\/himself. \u00a0I see people coping at most, because there is no real\u00a0choice and assessment of the situation outside constraints.\u00a0\n","comment_id":"25088","post_id":"6870","user_id":"32","parent_comment_id":"25078","creation_date":"Wednesday, October 19, 2016 - 12:15","group_id":"0"}},{"node":{"title":"Yuck, first world problems..","content":"\n.. is what @Matthias would probably say. Worrying about those things doesnt seem like the best use of our time, I agree.\n","comment_id":"25087","post_id":"6870","user_id":"32","parent_comment_id":"25077","creation_date":"Wednesday, October 19, 2016 - 11:40","group_id":"0"}},{"node":{"title":"In fact, I think that the","content":"\nIn fact, I think that the abortion underground functions so well purely because \u00a0and thanks to the hypocrisy of the Polish society. Probably after decades of liberal regulations to some extent women are aware of the fact that abortions are needed, but catholic brainwashing has been so effective, that they're trapped between the moral and the pragmatic views on abortion. Now what seems to prove this is that women are not interested in lobbying for their right to abortion - they somehow agree to comply with the rules by having them underground and accepting the stigma, rather than fighting\u00a0for their rights. Imagine even if the lowest estimate of 80.000 women having illegal abortions a year is right, and 10 percent of them would be up to fight with the system on that, we'd have a pretty great leverage to change the law by now. But we don't. have that. Well, at least until now - but this remains to be seen because we also have a conservative revival going on and if the church steps in, you never know who'd stay on top of things. I'd rather not expect us going any more liberal than we're at the moment.\u00a0\nAnother thing is that part of the available options just use the loopholes, they're not illegal. I guess you can't stop a woman from going abroad or having pills. And a lot of turning the blind eye on the doctors who i believe are well known for doing the abortions despite working underground.\nAbout the movement now, I think there is a chance for some momentum - but I'm not too optimistic about it. We're observing a bit mobilization of civil society ever since the new government came into power, but that rarely brought any results. At the end, they use their democratic victory to pass any decision they seem fit - and giving up on a project of an outrageous reform just to keep rather shameful status quo is not a huge failure for them I believe. We might be building awareness and capacity for the future right now. Let's see.\u00a0\n","comment_id":"25086","post_id":"6901","user_id":"678","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 11:20","group_id":"0"}},{"node":{"title":"hello - you might be inetrested in my tour?","content":"\nHi Orange House,\nI am coming to Greece this winter to offer (free) psychotrauma help in my trauma tour bus. Are you interested in hosting me? I can offer you trauma training, info sessions, trauma best practices and selfhelp, also individual consultations. Please visit my website and contact me if interested. I will be in Athens in january 2017\nybe\n","comment_id":"25085","post_id":"6754","user_id":"8959","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 11:00","group_id":"0"}},{"node":{"title":"Who would have thought Poles have it that bad","content":"\nI didn't know the full extent of the situation when over the past weeks the world was following protests against anti abortion regulations.. \u00a0I mean, having parents who lived through a communist pro natality decree and anti-abortion strict controls coupled with the shadyness of alternatives (one hears stories..) \u00a0does give me an idea.. But present times, whoa. \u00a0Thank you Natalia for sharing.\u00a0\nHow do the informal groups survive in this scene? Is there low enforcement and little policing which allows them to circumvent laws?\u00a0\nAlso, \u00a0are you hopeful after the so called success of the protests?\u00a0\n\n","comment_id":"25084","post_id":"6901","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, October 19, 2016 - 09:20","group_id":"0"}},{"node":{"title":"great","content":"\nYour plans sound great, let's speak again closer to the time that you come and see which groups\/places\/people you are interested in meeting here related to your project. Your services could be very beneficial to refugees so we can get you in contact with groups working with refugees or the social solidarity clinic of Thessaloniki which is another great initiative working on a community voluntary basis.\n","comment_id":"25082","post_id":"6890","user_id":"8960","parent_comment_id":"25068","creation_date":"Wednesday, October 19, 2016 - 02:16","group_id":"0"}},{"node":{"title":"for sure","content":"\nfor sure, let's keep in touch everyone!\n","comment_id":"25081","post_id":"6890","user_id":"8960","parent_comment_id":"25073","creation_date":"Wednesday, October 19, 2016 - 02:07","group_id":"0"}},{"node":{"title":"It may be generational too","content":"\nSpeaking as an American at the\u00a0age when living parents are all advanced seniors -\u00a0and many of those seniors live in homes and facilities,\u00a0while it can be said without danger of over-generalizing, that to many in my age group, having your late-age senior living with you is seen as an inconvenience. \u00a0\nBut I think at least when it comes to that WWII generation in the US, a very large number of them want to keep their independence as long as humanly possible. \u00a0They don't want to live with the family and they don't want to cede authority over their \"space\" to any of their kids. \u00a0So, it isn't all neglect and self-interest. \u00a0I know a lot of people my age who have parents who don't want to move in, or they do it as a kind of last resort. \u00a0\nThe ones who do, and take on a role in the family that I think is more like the model Alkasem describes, seem pretty happy though. \u00a0I admire it. \u00a0\nWhen I was younger living in San Francisco which has a very high Asian population, it seems like all of my asian friends had an elderly relative, usually a grandparent, living in their house. \u00a0Every time I went over to this one friend's house in Chinatown, granny was always in the kitchen cutting up vegetables or something. \u00a0I would see that and think, \"that isn't gonna happen at my house.\" \u00a0Neither generation wanted it.\n","comment_id":"25078","post_id":"6870","user_id":"8169","parent_comment_id":"0","creation_date":"Tuesday, October 18, 2016 - 18:49","group_id":"0"}},{"node":{"title":"Hi Noemi","content":"\nme I think the issue is more simple , in the middle east we say we live in a big families because it is more warm , inherited consensus make it so easy , trust me , in Syria I never worried about what I,m gonna eat , who,s I,m gonna spend time with ( because of the agenda of duties for people , neighbours , family ) , I started to wonder about that only in europe :)\n","comment_id":"25077","post_id":"6870","user_id":"9044","parent_comment_id":"24992","creation_date":"Tuesday, October 18, 2016 - 18:27","group_id":"0"}},{"node":{"title":"thanks Alberto","content":"\n..I really don,t know I was born and I raised up like this untill we don,t think about it , belive me when I say : I started to wonder about those things here in Europe\n","comment_id":"25076","post_id":"6870","user_id":"9044","parent_comment_id":"24903","creation_date":"Tuesday, October 18, 2016 - 18:16","group_id":"0"}},{"node":{"title":":-) I am so looking forward","content":"\n:-) I am so looking forward to meeting you all !\n","comment_id":"25075","post_id":"6890","user_id":"8959","parent_comment_id":"25074","creation_date":"Tuesday, October 18, 2016 - 17:23","group_id":"0"}},{"node":{"title":"Literally next door!","content":"\nMe, @ChristinSa @To_Steki @Positive-Voice and maybe some others, we (or our projects) are in the same neighbourhood. So, when @ybe and @Alex Levene visit Thessaloniki, we can arrange a creative meeting! Thanx to this community!\n","comment_id":"25074","post_id":"6890","user_id":"8957","parent_comment_id":"25073","creation_date":"Tuesday, October 18, 2016 - 17:02","group_id":"0"}},{"node":{"title":"And do not forget about us :-)","content":"\nIt's lovely to see you \"next door neighbours\" connect in the context of a global community! Let's stay in touch, though, there are many people in the Edgeryders community, all over Europe, trying to help out, healing our ailing societies. @Alex Levene is an obvious example, but there are others. The potential for mutual learning is obvious.\u00a0\n","comment_id":"25073","post_id":"6890","user_id":"34","parent_comment_id":"25036","creation_date":"Tuesday, October 18, 2016 - 15:35","group_id":"0"}},{"node":{"title":"yes please !","content":"\nI would like to have some more contacts in Thessaloniki; I still have room in my agenda (december) to help a couple of organisations\nf.ex with trauma info sessions for the helpers (basic trauma information, interventions and exercises) or by helping develop on ongoing 'how-to-cope-with-trauma-practice, or...\nthx, ybe\n","comment_id":"25068","post_id":"6890","user_id":"8959","parent_comment_id":"25067","creation_date":"Tuesday, October 18, 2016 - 13:25","group_id":"0"}},{"node":{"title":"Thanx Ybe, i agree","content":"\n@ybe thanks for your kind words, i agree with what you are saying about these two factors and this is what i tried to highlight in my article! Your traumatour project also seems super interesting and it is very exciting to see that more people are planning to visit Thessaloniki with their projects in the future! I am in contact with people working in alternative health and spiritual health projects here in Greece so I could put you in contact with them, if you are interested.\n","comment_id":"25067","post_id":"6890","user_id":"8960","parent_comment_id":"25061","creation_date":"Tuesday, October 18, 2016 - 13:18","group_id":"0"}},{"node":{"title":"Great!","content":"\nSee you soon!\n","comment_id":"25066","post_id":"6890","user_id":"8957","parent_comment_id":"25064","creation_date":"Tuesday, October 18, 2016 - 13:08","group_id":"0"}},{"node":{"title":"Good to hear about HelpRefugees and to have you here in Greece","content":"\n@Alex Levene good to learn about the work of HelpRefugees, I have not come across them so far but will look for more information and will try to contact their team in Greece to see what they are doing. I am very much in favour of refugee self-organisation or projects involving the solidarity movement and refugees in horizontal relationships (althoug I am aware that this is not always easy to achieve) but I can see and understand that some of the more formal orgs are also being organised in a way that allows quite a lof of self-organisation or self-management in practice and are doing a lot of great work on the ground. I have seen this already with some organisations working in the camps around Greece.\nIt will be great also to have you here in Greece! Please let me know when this happens and I will arrange to meet you with our group in order to share our experiences and other valuable information.\n","comment_id":"25065","post_id":"6890","user_id":"8960","parent_comment_id":"25037","creation_date":"Tuesday, October 18, 2016 - 12:56","group_id":"0"}},{"node":{"title":"This is great Aravella","content":"\nThis is great @Aravella Salonikidou! I have heard about your project and have 'seen' you virtually here and there on facebook, mainly through Room 39 and Steki Metanaston groups\/pages, as I can understand that you are also helping the people there. I am also involved with some of the groups at Steki so we could perhaps meet there sometime, or at Micropolis, another social space nearby where this R2R call center project is based. I would love to see how we could possibly collaborate and help each other and I am sure that there is a lot to share\/learn from the work that we and other people in our networks, are doing. I will connect with you on facebook to stay in touch! :)\n","comment_id":"25064","post_id":"6890","user_id":"8960","parent_comment_id":"25036","creation_date":"Tuesday, October 18, 2016 - 12:28","group_id":"0"}},{"node":{"title":"Glad you find this interesting","content":"\nI am glad you find this project interesting @Alberto , I was also very excited to hear about it when I visited this Lesvos camp. Not only because it encourages refugees to learn new skills or use existing ones, but also because of the great idea of reuse of plastic materials and environmental awareness related to the project. I wrote an article about it which was published here, although it is in Greek there is quite a few photos from the camp and the handmade bags, if you wish to have a look. You can also find more info about this self-organised Lesvos camp on the following link, with contact details, in case you would like to contact them about this specific project.\n","comment_id":"25063","post_id":"6890","user_id":"8960","parent_comment_id":"25027","creation_date":"Tuesday, October 18, 2016 - 12:10","group_id":"0"}},{"node":{"title":"love it","content":"\nI find this a very hopeful story\n1) because of the involvement of refugees themselves - it is so empowering to be able to do something to improve your life, to have work, to have a life, an income and to be part of a community\n2) because of the 'amplification' factor - you put a lot of energy in connecting different initiatives and projects and that is what we need to create general and global change\nthx\nybe from traumatour (soon in thessaloniki)\n\u00a0\n\u00a0\n","comment_id":"25061","post_id":"6890","user_id":"8959","parent_comment_id":"0","creation_date":"Tuesday, October 18, 2016 - 09:06","group_id":"0"}},{"node":{"title":"Are you looking for partnerships abroad?","content":"\n@Big Bang Schools welcome from me too!\nI'm\u00a0a bit late to the party, but I'm curious if you also work with secondary and high schoolers? My mum teaches at a pretty mainstream school in Romania and was just telling me the other day that they would love to partner up with schools abroad for creative exchanges betweel pupils. Is that something you would consider? Also, if you're involved in international educational projects and could use a partner in this area, let me know!\u00a0\n","comment_id":"25056","post_id":"6798","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 17, 2016 - 15:34","group_id":"0"}},{"node":{"title":"Anything we can support you with?","content":"\nNice to meet you @rem_it, I'm guessing you're part of the Milano crowd?\nWhat rural areas do you have in mind for deploying this technology?\n","comment_id":"25055","post_id":"6860","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 17, 2016 - 14:50","group_id":"0"}},{"node":{"title":"would like to fix date(s)","content":"\n@aravellasalonikidou Hello Aravella , I am in the middle of organizing and planning my tour to Greece. I would like to fix date(s) with you. What do you need from me? What could I offer? To the Thessaloniki projects you're in i? Maybe have a skype conversation this week? I would like to fix dates for the beginning of december. Would that be allright with you?\ncontact me by mail ybe@traumatour.eu or skype chez_filly19\nthx - I look forward meeting you!\n","comment_id":"25051","post_id":"6729","user_id":"8959","parent_comment_id":"0","creation_date":"Monday, October 17, 2016 - 11:49","group_id":"0"}},{"node":{"title":"What could space for this kind of \"meta\" conversation look like?","content":"\nIt's such an important topic in contemporary life which has ties to so many other domains of life, and politics. I find that a reflective conversation with some kind of \"distance\" such as this one helpful for handling the feelings. And for sensitising others\/ building literacy around how to help\/support the grieving process. Somehow this is being built around mental health especially depression. Grief? Not yet...\n","comment_id":"25050","post_id":"6884","user_id":"45","parent_comment_id":"0","creation_date":"Monday, October 17, 2016 - 10:57","group_id":"0"}},{"node":{"title":"Hi Patrick,","content":"\nHi @Patrick Andrews\nI echo your sentiments and feel that grieving does not have to be temporal. We tend to associate a negative connotation with grief - that the griever \"has not moved on\", is \"affecting others\", is \"bothersome\" - that moralizes the different beliefs and practices people have about the dead. In some cultures, the dead are permanently embedded into the daily lives of the living, such as when Taoists pray to their ancestors via altars, or when the Japanese pay respects to their dead in mediated ways through digital budisan on apps and websites. For some cultures\/some of us, these everyday integrations bring comfort and recovery more than any prescribed grieving period will, and digital media are certainly helping to normalize these options.\n","comment_id":"25047","post_id":"6884","user_id":"8951","parent_comment_id":"24981","creation_date":"Monday, October 17, 2016 - 06:46","group_id":"0"}},{"node":{"title":"Hi @Alberto,","content":"\nHi @Alberto,\nI responses to some of these in my reply to Patrick below. I think the key distinction between the infamous Black Mirror episode and other forms of memorialization is the conflation of representation\u00a0of a person with the\u00a0actual\u00a0person. When we mourn through artifacts and practices, we remember selective attributes of the dead and memoralize the things significant to us. But we seek not to replicate, copy, reduplicate these sensations and connections. They are\u00a0nostalgia\u00a0rather than\u00a0replication, which is probably why concept behind the BM episode was so arresting - it sought to\u00a0replace\u00a0the dead rather than\u00a0remember\u00a0him.\u00a0\n","comment_id":"25048","post_id":"6884","user_id":"8951","parent_comment_id":"24968","creation_date":"Monday, October 17, 2016 - 06:45","group_id":"0"}},{"node":{"title":"Hi Nadia,","content":"\nHi @Nadia,\nThanks for your thoughts. I'm sorry to hear about your cousin and share in your experience that these fleeting witnessing of the social media profiles of the dead are a jarring juxtaposition that solicits the grieving process all over again. Yet, many of the young people I interviewed expressed that this presence brought them comfort and helped in their recovery, because the memory of their loved one is permanently embedded into their social media networks and uses, and the digital footprints they share can be achived and memoralized on the\u00a0digital\u00a0platform of social media (they pay less attention to the\u00a0public\u00a0nature of some of these platforms).\nMemorialization of the dead for the dead who can no longer speak for themselves is indeed tricky. I think there is an implicit hierarchy of grief and proximity among the loved ones of the deceased that influencers who gets to have a say. I personally feel a little put-off when folks of super-distant, loosely aggregated, weak social ties excessively express their grief over my sister, especially when some folks start comparing the authenticity and intensity of their grief. But I remind myself that it is not in my place to police how people grief, because we all cope in ways that help us. So I end up putting aside some of these negative feelings, and reach out to those in the 'inner social circle' for mutual aftercare.\u00a0\n","comment_id":"25046","post_id":"6884","user_id":"8951","parent_comment_id":"24956","creation_date":"Monday, October 17, 2016 - 06:36","group_id":"0"}},{"node":{"title":"*some context I found interesting on self-diagnosis","content":"\nOf course part of why I found it interesting is because it is an unrepresentative outlier. But still, outliers show potential.\nhttp:\/\/www.thisamericanlife.org\/radio-archives\/episode\/577\/something-only-i-can-see?act=1#play\nIf you contrast that with the wikipedia entry on self diagnosis, which say things like:\n\"One of the greatest dangers of self diagnosis in psychological syndromes, is that you may miss a medical disease that masquerades as a psychiatric syndrome. Self-diagnosis also undermines the role of the doctor-which is not the best way to start the relationship. Then there is the fact that we can know and see ourselves, but sometimes, we need a mirror to see ourselves more clearly. By self-diagnosing, you may be missing something that you cannot see. Another danger of self diagnosis is that you may think that there is more wrong with you than there actually is. Self-diagnosis is also a problem when you are in a state of denial about your symptoms.\"\nI have to say it seems like there is something rotten in the state of Denmark. How much research money gets spent on improving methods of self diagnonsis exactly?\nNot much it seems:\nPubs since 2015 https:\/\/scholar.google.no\/scholar?as_ylo=2015&q=self+diagnosis+health+care&hl=en&as_sdt=0,5\nPubs overall https:\/\/scholar.google.no\/scholar?q=self+diagnosis+health+care&btnG=&hl=en&as_sdt=0%2C5\n\u00a0\n","comment_id":"25043","post_id":"6725","user_id":"6534","parent_comment_id":"0","creation_date":"Sunday, October 16, 2016 - 12:21","group_id":"0"}},{"node":{"title":"Add on kit ideas","content":"\nI've worked on\/brooded over some things that may be helpful in connection to this.\n1. A minimal self-diagnosis kit, that can be extended by modules. The basic version would be perhaps something like \"where there is no doc\/dentist\" in an adapted audiobook format. This would not require literacy and could be provided via extremely cheap mp3 player (sell for ","comment_id":"25042","post_id":"6725","user_id":"6534","parent_comment_id":"0","creation_date":"Sunday, October 16, 2016 - 11:50","group_id":"0"}},{"node":{"title":"Interesting stuff","content":"\nI & a friend have put some thought into care & self driving cars here (creative commons): https:\/\/cocreate.localmotors.com\/RaMansell\/healthy-movement\/\nI also have a couple of ideas regarding hygiene (shower mods), and had worked on a prototype of for electrical stimulation of muscle cells grown in a dish.\nI'd love to discuss those things with someone who has a little more care background than I do (materials science).\n","comment_id":"25041","post_id":"6838","user_id":"6534","parent_comment_id":"0","creation_date":"Sunday, October 16, 2016 - 11:21","group_id":"0"}},{"node":{"title":"I think there are many projects","content":"\n@Alberto try these: http:\/\/www.enallaktikos.gr\/ar22107el-o-afgan \nhttp:\/\/www.huffingtonpost.gr\/2016\/06\/16\/koinonia-sosivia-prosfyges-_n_10483414.html\n","comment_id":"25040","post_id":"6890","user_id":"8957","parent_comment_id":"25027","creation_date":"Sunday, October 16, 2016 - 10:53","group_id":"0"}},{"node":{"title":"Thank you","content":"\nMany thanks for the kind words @ChristinSa, i'm really glad that my words touched you.\nIt's interesting also that it made you think of camps at places like Idomeni. The team who manage the warehouse in Calais and do a lot of the groundwork on the Jungle camp is led by the British charity organisation HelpRefugees. They also did a lot of work in Idomeni during the last year as well.\u00a0\nI believe they have now moved their operations in Greece to Thessaloniki, so perhaps you have come across them and their team members? I saw that they recently opened a new distribution warehouse there.\nI have been talking to their team and i'm trying to find a time in early January when i can come out to Greece and talk to them\/see what they are doing there. I hope that during this time i might also be able to meet some of the great people and organisations that have shared their stories on Edgeryders (@To-Steki, @Aravella Salonikidou, @Pavlos)\n","comment_id":"25037","post_id":"6890","user_id":"6559","parent_comment_id":"25008","creation_date":"Sunday, October 16, 2016 - 08:57","group_id":"0"}},{"node":{"title":"Thanx for sharing @ChristinSa","content":"\nThanx for sharing @ChristinSa! \u00a0It could be nice to meet you! We run \"next door's\" project and we don't know each other. Now I think we have this chance. I'd like to know more details and how I can help.\n","comment_id":"25036","post_id":"6890","user_id":"8957","parent_comment_id":"25008","creation_date":"Saturday, October 15, 2016 - 22:49","group_id":"0"}},{"node":{"title":"Thank you for the","content":"\nThank you for the encouragement! I'm working on my article these days, so I'm a little bit (more) buzy! I'm glad to know about R2R. I didn't know about this project. I'll be in touch!\n","comment_id":"25035","post_id":"6890","user_id":"8957","parent_comment_id":"25011","creation_date":"Saturday, October 15, 2016 - 22:29","group_id":"0"}},{"node":{"title":"What?!?","content":"\n\"In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad.\"\nDo you have more information about this story, @ChristinSa ? It sounds amazing!\u00a0\n","comment_id":"25027","post_id":"6890","user_id":"34","parent_comment_id":"25008","creation_date":"Saturday, October 15, 2016 - 21:02","group_id":"0"}},{"node":{"title":"Great inspiring stories","content":"\nDear @Noemi thanks for the encouraging words and suggestions! I know about the great work of 'RefugeesWork' initiative as we collaborate with them through FairCoop on a global level. I am not sure they know about our local call center project in Thessaloniki, but I am glad that this article and your comment gave the opportunity for this 'connection'. I hope more people continue to share their inspiring stories in order to keep discovering common paths and shared visions.\n","comment_id":"25022","post_id":"6890","user_id":"8960","parent_comment_id":"0","creation_date":"Saturday, October 15, 2016 - 20:34","group_id":"0"}},{"node":{"title":"Thanx for pointing out these beautiful articles","content":"\n@Alberto thank you for your comment and for pointing out these 2 great articles by @Alex Levene! I enjoyed reading them from the first until the last word and felt very touched as they brought up images of informal camps in Greece (e.g. Idomeni in the north borders, the islands and other places) where similar situations and an amazing solidarity movement arose to provide care for the people there.\nIn all these places, it was very encouraging to see what can be achieved when determination of refugees and solidarity from activists\/volunteers is combined in a self-organised and impulsive way. In the informal PIKPA camp in Lesvos for example, refugees create beautiful, colourful bags from discarded, life-jacket materials and are also planning to distribute them abroad.\nThere is many hopeful examples of such great initiatives in Greece and other countries and I am sure they will multiply as refugees are settling for a longer-time period in their new living places.\nWhat seems to be important right now, in order to make all this effort more meaningful and useful, is to move further from just providing for the basic needs to create structures of solidarity and cooperation that can provide more sustainable solutions and allow people to take care of themselves and feel empowered. This is a big challenge that lies ahead but we should start thinking this way if we want to make a real change to both their lives and ours.\n","comment_id":"25008","post_id":"6890","user_id":"8960","parent_comment_id":"0","creation_date":"Saturday, October 15, 2016 - 16:12","group_id":"0"}},{"node":{"title":"+1 focus on one area at a time","content":"\nGood words, Alex. Same for me.\nThe trap is what to me is\u00a0a deadly combination: a lot of flexibility and many roles to choose from, on one hand,\u00a0and being a generalist\u00a0.on the other hand. These two can sometimes get you to drift off and not focus on one area at a time -> hence some extra\u00a0messiness in a flat organisation, as prompted by @Yannick.\n","comment_id":"25012","post_id":"6866","user_id":"32","parent_comment_id":"25004","creation_date":"Saturday, October 15, 2016 - 15:05","group_id":"0"}},{"node":{"title":"Timely roles for Network connectors, documenters, researchers","content":"\nGreat story, Christine! I find it so useful to see people like you, Alex, @Aravella Salonikidou who are not just contributing on the ground, but also take the time to write\u00a0the story\u00a0and build this layer of connectivity that is needed for multiplication as you mention.. or remodeling of cooperation. It seems you're on a promising path. I will try to support this in any way I can. And if you know someone who is interested to set up shop online to work out distribution of eg. handmade objects\u00a0abroad\u00a0- this team in Berlin led by @ninabreznik and @serapath\u00a0are offering free coding courses for refugees.\n","comment_id":"25011","post_id":"6890","user_id":"32","parent_comment_id":"25008","creation_date":"Saturday, October 15, 2016 - 15:00","group_id":"0"}},{"node":{"title":"Anyone from the project around here?","content":"\nI'm curious what is an actionable proposal from the group and how it is being received..?\u00a0Going straight into policy making seems like a titanic work, i'd be interested in how food waste is being approached at the policy level, if at all?\u00a0This seems like a topic many people care about and which is already seeing promising small scale solutions, particularly in Germany.. with Foodsharing.de, Yunity, community gardens, pop up\u00a0fridges and many others.\u00a0\n","comment_id":"25009","post_id":"6840","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, October 15, 2016 - 14:28","group_id":"0"}},{"node":{"title":"Arts organistations","content":"\nIt's definitely worth reaching out to arts organisations to see how they respond to these types of ideas as well. I don't know about the mainland european models, but with the drastic reduction in state subsidy and the lack of increase in American style donor funding, UK based performing arts organisations have become much more interested in the ways they can repurpose buildings for theatre, creative industries and wider arts based practices.\nAn interesting case study would be Theatre Delicatessen in London:\nhttp:\/\/theatredelicatessen.co.uk\/about\/\nThey seem to only ever work in spaces that most others would move out of. Since they started they have had London bases in a disused factory in the West End (now a boutique hotel, i believe) then they moved into the recently abandoned Guardian newspaper head office, now they're moving across the river to an old Victorian library building.\nThey're less interested in what the space was before than what it can be in the future.\n","comment_id":"25005","post_id":"6880","user_id":"6559","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 21:18","group_id":"0"}},{"node":{"title":"Working across strands, separately","content":"\nAt different points in my life i have found myself settling into each strand.\nI think that i'm lucky that i have a mixture of practical\u00a0and esoteric skills that allow me to find a happy place doing a variety of tasks. I often find that the more 'mindless' a physical task is the more it opens my mind up to thinking about the bigger picture.\nThat said, i have found that i only really excel when i'm allowed to focus on one area at a time. If i need to be a doer, then i can't also be a prepper. The same with preparing and leading;\u00a0Leading and thinking.\nI do also think that 'thinking' and 'leading' are mutually exclusive properties. I believe that leaders emerge naturally from each section or strata. You see this kind of strategic leadership built into highly heirarchical organisations like the armed forces. You have 'doer' leaders and 'prepper' leaders and 'thinker' leaders.\u00a0\n","comment_id":"25004","post_id":"6866","user_id":"6559","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 21:07","group_id":"0"}},{"node":{"title":"There is an answer to this","content":"\nWhen you first posted your comment i had a rush to answer it immediately. I had a gut reaction that there is a response to the provocation.\nBut try as i could i couldn't find the correct words to frame it.\nI'm not sure i've worked it out fully even now but i think that the answer is this.\n\"if you build it,\u00a0someone\u00a0will come\"\nThe most important part is to not be concerned about attracting a predefined set of people to a structure, but to accept that the people who are drawn to your initiative are 'de facto' the right people. Self- selection.\nI feel\u00a0that this is similar to the Edgeryders platform itself. Perhaps information around how people chose to engage in a digital landscape can be extrapolated out into the way they engage with physical organisations\/structures\/bodies in the 'real' world?\n","comment_id":"25003","post_id":"6767","user_id":"6559","parent_comment_id":"24639","creation_date":"Friday, October 14, 2016 - 20:35","group_id":"0"}},{"node":{"title":"The attitude you bring to the party","content":"\nI agree with Alberto, epsecially in terms of having low risk starting points. \u00a0Because everyone brings to a situation their own place on a kind of continuum between a willingness to risk getting burned by someone in order to increase the possibilites of fruitful new relationships, and being protective of oneself to the point that you only \"let someone in\" after they have demonstrated in some way their worthiness.\n","comment_id":"24999","post_id":"6869","user_id":"8169","parent_comment_id":"24995","creation_date":"Friday, October 14, 2016 - 17:19","group_id":"0"}},{"node":{"title":"R2R!","content":"\nGreat stuff, @ChristinSa !\u00a0I love the \"R2R\" concept. With @Alex Levene we had already appreciated the self-organising skillls demonstrated by refugees in the case of The Jungle in Calais (I highly recommend you read his beautiful posts: one and two).\nThe Jungle behaves the way it does because it is not an official camp. It's more like a favela: the first stop in a migrant's social journey, which mostly goes upwards in the social ladder. So, refugees are more free to cooperate, R2R, then they would be in an official camp. Their ingenuity and skills come into play: they make their own lives better, and become empowered at the same time. Your own story, it seems, goes much in the same direction.\u00a0\n","comment_id":"24998","post_id":"6890","user_id":"34","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 17:00","group_id":"0"}},{"node":{"title":"Practical learning","content":"\nI really enjoyed Loic's presentation. It was very practical: disable lifts so you can use the stairway to have social control while leaving the space open, out services at ground level, reuse office space as highly flexible living quarters...\nI think this could be a general purpose tool. A sufficiently large, flexible and central building can act like a coral reef from many life forms to use it and transform it. In 123 Rue Royale we see a community kitchen and\u00a0a library, for example.\u00a0\n@Yannick , is there a way that Loic himself could join this discussion? Would he be up for answering our comments?\u00a0\n","comment_id":"24997","post_id":"6880","user_id":"34","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 16:50","group_id":"0"}},{"node":{"title":"Is it not the other way around?","content":"\nMy take on this is: you create trust by collaborating, not the other way around. Collaboration comes first.\nThe trick is to create situations where collaboration is cheap, and people can try it at no great risk to themselves.\u00a0\n","comment_id":"24995","post_id":"6869","user_id":"34","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 16:45","group_id":"0"}},{"node":{"title":"Adjusting roles over time and situation","content":"\n@Yannick , you have a point here. I would like to add my own experience.\u00a0\nHere it is: there is a positive correlation between being good at different things, like thinking, prepping and executing in your scheme. Smart, hard working people tend to be better on all three (or n-) dimensions with respect to others. So, I very much share @Noemi 's point of view: when we meet an interesting person, we try to imagine a role for her, then try to create the conditions for us to be able to offer her that role. But, at the same time, the role is embedded in the\u00a0project,\u00a0not in the organisation. People can try their hand at roles, then maybe move on to different ones in the next project.\u00a0\nThis allows for some limited pairwise adjusting, too. I prefer pure research to\u00a0middle management roles, and I prefer middlie management to leadership. Still,\u00a0in many of my former projects\u00a0I had to lead, because no one else would do it (or could do it). I led reasonably well, with some mistakes, and I would do it again if I cared enought about the project. But when I find a better leader, I gladly step down to become, I guess you would say, a doer.\u00a0\n","comment_id":"24994","post_id":"6866","user_id":"34","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 16:38","group_id":"0"}},{"node":{"title":"When squatting is the opposite of ghettoization","content":"\nI found the part about living in diversity most interesting - and I imagine some of the founders in 123 are real community governance experts having made it possible for people to pay differentially according to their financial status.\u00a0\nI don't understand how this case is not more referenced or visible online.. I only found a couple of youtube TV coverage videos.\u00a0\n","comment_id":"24993","post_id":"6880","user_id":"32","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 16:04","group_id":"0"}},{"node":{"title":"The intergenerational divide","content":"\nHaving met you in Brussels made me really grateful,\u00a0@Alkasem\nI wanted to say that the intergenerational support has a strong tradition in some places in Europe, and some practices are ongoing - I even wrote about how my grandma and grandgrandma before her come to live with her children at old age. What has changed I feel is that we perceive this to be a burden to some extent - and tend to see less the great potential for mutual support. The response to your question about\u00a0children moving\u00a0away to become independent is true, and so living\u00a0with parents after a while can feel like taking a step back. Especially in cities and urban areas, we seem to have no time to engage in real conversations and see what new things we each have to say to each other or needs we have, even in a family..\u00a0\n","comment_id":"24992","post_id":"6870","user_id":"32","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 15:51","group_id":"0"}},{"node":{"title":"great post","content":"\n@wishcrys \nThanks for this. I suffered a loss many years ago and couldn't understand the reaction of the people around me. It was if they allowed me a month or two to \"get over it\" and then I was expected to move on. Some good friends couldn't bring themselves to mention the dead person's name or admit she ever existed - as if it would be too painful. Yet I wanted to talk, and talk about her. But I got the message and shut up too, to everyone's relief it seemed. I remember crying in front of my brother a few months later and he didn't know how to cope. But he hadn't been taught that expressing emotions is normal and human. I would be delighted if the coming of the digital age can have a positive impact in tis respect, enabling people to express their grief, and their concern for the grieving, more boldly and freely.\u00a0\n","comment_id":"24981","post_id":"6884","user_id":"446","parent_comment_id":"0","creation_date":"Friday, October 14, 2016 - 00:23","group_id":"0"}},{"node":{"title":"I had no idea","content":"\nWow, @wishcrys . This is a beautiful, well researched post.\u00a0\nI am definitely not young anymore, and I guess I am still moving within the paradigm of \"mourn, then move on\". Actually, my understanding is that you mourn exactly to\u00a0make peace with your loss, so that everybody can move on. People in my circles keep memories and memento of those who passed away, but they do not want them to be too interactive.\nThis is why the famous Black Mirror episode about digital afterlife was so disturbing. The protagonist was flailing about, unable to move on, as the AI occasionally manages to make a convincing simulation of her dead husband. Convincing, that is, to her: we, the spectators, are not fooled. We shake\u00a0our heads as she holds on to the simulacrum. We see her doing almost all the cognitive work to build the illusion of an ongoing relationship.\u00a0\nThis is a well known bug in our cognition: we antropomorphize. In computer science, this was first exploited by the famous ELIZA program in 1966. psychological research around it established that\u00a0\n\"[...]\u00a0even if fully aware that they are talking to a simple computer program, people will nonetheless treat it as if it were a real, thinking being that cared about their problems.\" \u2013 source\nI had a friend who was very active on social media \u2013 in fact one of its early\u00a0users, and author of a 2003 book thereabout. When he passed, I unfollowed his accounts. The last thing I want is a digital ghost haunting my feeds.\u00a0\n","comment_id":"24968","post_id":"6884","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, October 12, 2016 - 20:19","group_id":"0"}},{"node":{"title":"Also came across this story which miht interest you","content":"\nhttp:\/\/www.theverge.com\/a\/luka-artificial-intelligence-memorial-roman-mazurenko-bot\n","comment_id":"24964","post_id":"6884","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, October 12, 2016 - 15:49","group_id":"0"}},{"node":{"title":"Successful event","content":"\nDespite a cold and rainy evening the FES cycling event was successful. \u00a0The test riders got carried away pedalling with FES activated legs. This was an open air event showing functional and fun use of scientific results. The\u00a0imperession was that the BerkelBike was useful and we should work on making more readily available.\nMore information here:http:\/\/wehandu.it\/it\/eventi\/\n\u00a0\n\u00a0\n","comment_id":"24915","post_id":"6796","user_id":"8837","parent_comment_id":"0","creation_date":"Wednesday, October 12, 2016 - 13:43","group_id":"0"}},{"node":{"title":"Cousin","content":"\nHi Crystal.\nI am sorry for your loss. This is a difficult topic to write about and not sure how to go about it. But I'll just go ahead and try. Reposting your questions here with an attempt at answering them below:\n\nHave you ever commemorated the death of a loved one in digital spaces? What did you do? How did others respond to you?\nWhenever you witness someone sharing their grief on social media, how do you feel? Does it motivate you to respond to the person in particular ways?\nHow can we use social media more conscientiously so as to create spaces for mutual aftercare?\u00a0What can we do for each other in digital spaces whenever a global grieving event occurs?\n\nFour years ago a favourite cousin died in a car accident. Her facebook page is still up and people use it as a memorial site. Sometimes her icon pops up unexpectedly in my feeds and it floors me everytime. I couldn't go to the funeral: it still feels surreal, like she might show up at any time, and the \"active\" facebook account isn't helping.\nI am a private person- If and when I do post about anything it is with a lot of consideration. I rarely post about someone while they are alive if it is not to share something they themselves intended for public consumption. Posting about someone else's death\u00a0feels like a violation of their agency and privacy. They can no longer have agency over the narrative spun about them and it somehow adds insult to the injury for me.\nWhen I witness others sharing their grief I usually get in touch via a PM. Asking how they are and offering a shoulder to cry on if they need it. Commenting feels to exposed, like participating in a spectacle orchestrated by FB. Did you ever watch \"We Live in Public\"? I did many years ago and it has definitely shaped how I feel about social media.\nUsing Social Media more conscienscously....mmm I don't know. What immediately comes to mind is that the business models of commercial social media platforms is advertising based \"fast\" media. I ask myself what effect this has on the dynamics of grief, which are slow and\u00a0somehow not very condusive to selling anything - except for membership in cults or possibly self-help literature.\nIn my parents cultures grief is a shared experience, there are a lot of social rituals for processing it have written about it in\u00a0Life and Death at the UnMonastery. I recently came across something called Sunday Assembly. They have set up a secular equivalent to the sunday sermons at church to address the lack of spaces for social communion and other\u00a0rituals which are key to cementing strong communities. Somehow I feel social media can be used to grow these kinds of movements and to connect a critical mass of people to them. So that when grief\u00a0strikes, the individual is embedded in a nurturing local community that can help them heal.\nMy two cents..\nI don't know if it relevant to your work\n","comment_id":"24956","post_id":"6884","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, October 12, 2016 - 12:19","group_id":"0"}},{"node":{"title":"Reminds me of this","content":"\nHey @LotfiAndSelvi, this reminds me of another Belgian project called DUO for a JOB. Their tagline 'integenerational coaching' sums it up well: older people passing on their skills to young people with a migrant background. Is that something you envision as well? It might be insightful to talk to them as well.\nIn my home town we have a related story going on. The old movie theater \u00a0in the city centre, a beautiful building with a rich history and emotional meaning for\u00a0a lot of people, was bought by project developers after bankruptcy. They plan to install service flats where elderly that are still okay can live in co-housing with people who need care, like other elderly or young people with a disability. Yet the whole project has a very commercial smell hanging around it. Do you meet similar stories, is there an impact on the sector?\n","comment_id":"24954","post_id":"6881","user_id":"8889","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 22:37","group_id":"0"}},{"node":{"title":"Intergenerational Care Projects","content":"\nThere are a number of\u00a0interesting intergenerational care projects internationally - including:\u00a0Present Perfect - USA & Fureai Kippu - Japan.\nThe Deventer initiative is terrific. So, too, is the Hogeweyk community which involves young people living alongside people with dementia.\u00a0\nI understand there's an initiative in the US where older people are running their own care homes - if anyone comes across a URL leading to further information, please do share it.\n\u00a0\n","comment_id":"24939","post_id":"6881","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 14:47","group_id":"0"}},{"node":{"title":"This is happening in the Netherlands. via the Internets ","content":"\nSo the lovely\u00a0@CommonFutures has just shared this in response to my tweet asking for help:\u00a0Intergenerational Housing in Deventer.\nIt's really something:\u00a0a project started in 2013 for a new elderly\u00a0retirement\u00a0home where students pushed back by unaffordable student housing can also live\u00a0without paying rent,\u00a0and in exchange volunteering 30 hrs of social activities per month.\n","comment_id":"24938","post_id":"6881","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 14:04","group_id":"0"}},{"node":{"title":"Makes sense to me too. My two cents","content":"\nI remember talking with Celine in Bxl\u00a0about the perks and not of a flat group organising. The hardest part I'm experiencing is with growing\u00a0- if you have a small team starting up people are more than willing to do everything and teach themselves what they don't usually do in order to make it work. When numbers are in,\u00a0it\u00a0takes a conscious effort just to establish processes, or make norms more explicit\u00a0i.e. double check understanding of the task at hand; make sure there is at least someone committed to the task; reinforcing that it's OK to ask for help; to fail etc.\nWhat I found that works is treating everything as a project in and of itself and assigning roles within the project. A making of sales, an event, a funded project, anything.\u00a0In another one, roles can change, but as long as you have someone acting as a PM with that skillset (probably a prepper?)\u00a0that takes on the\u00a0responsibility to think about\u00a0roles\u00a0and enable them in the project team.\nA\u00a0final point: a flat organisation has leaders of its own, even informal\u00a0- I can't imagine not having leaders, even multiple ones,\u00a0giving direction to the org.\u00a0Don't you have them in your large group Yannick?\u00a0Falkwinge,\u00a0who wrote about making great ideas happen with many people contributing, was saying that managing\u00a0day to day operations require\u00a0\"one portion classic\u00a0project management, one large portion of wisdom about conflict resolution, and one portion of methods on preserving the swarm\u2019s goals, culture, and values as it grows.\" OK, his Pirate Party\u00a0was\u00a0a swarm-like organisation which is not the same as flat but still pretty free, but also especially at risk of becoming chaotic. So having these hard+soft skills\u00a0distrbuted within the leadership may help the general organisation and support others to fall into specific roles..\n","comment_id":"24933","post_id":"6866","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 08:24","group_id":"0"}},{"node":{"title":"Anyone has experienced co-living with elderly?","content":"\nHi @LotfiAndSelvi, you say the elderly \"are viable resources for the development of our society\" - what do you have in mind? Twenty years of working for them must be pretty righ in insights.\nI only know of very sporadic activities that are intergenerational - and most happen around holidays: for example youth taking presents to care homes and spending time with their new grannies for a day or so. It seems to put a smile on people's faces, but of course its not substantial, as\u00a0what you are talking about.\u00a0\nCurious if new (co)living models such as @Simonedb's has good news about what can be achieved if generations help each other remain active under the same roof. Are you seeing that Simone or is everyone in your houses still fairly young?\n","comment_id":"24932","post_id":"6881","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 07:41","group_id":"0"}},{"node":{"title":"How do you know you are succeeding?","content":"\nHello @Positive-Voice, and welcome! I somehow managed to miss this post. You seem quite mature\u00a0for a non profit and mobilizing volunteers consistently. I was always curious, is there a way to see if you're effective in prevention\u00a0and raising awareness outside the campaign outputs - for example how many people you've talked to, how many flyers were spread etc?\u00a0\nAre you seeing your most vulnerable populations\u00a0in Thessaloniki more empowered over the years or is your job getting more and more difficult (for reasons that maybe don't have anything to do with your organisation's work)? \u00a0\n","comment_id":"24931","post_id":"6771","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 07:21","group_id":"0"}},{"node":{"title":"I salute you! ","content":"\nWhat a great bunch of people! One of the perks of working with Edgeryders is that we come within line of sight of all these super-interesting individuals. I have already interacted with most of them, and\u00a0cannot wait to read more from all. Ad maiora.\u00a0\n","comment_id":"24930","post_id":"6882","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 00:43","group_id":"5954"}},{"node":{"title":"I salute you! ","content":"\nWhat a great bunch of people! One of the perks of working with Edgeryders is that we come within line of sight of all these super-interesting individuals. I have already interacted with most of them, and\u00a0cannot wait to read more from all. Ad maiora.\u00a0\n","comment_id":"24930","post_id":"6882","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 00:43","group_id":"5954"}},{"node":{"title":"I salute you! ","content":"\nWhat a great bunch of people! One of the perks of working with Edgeryders is that we come within line of sight of all these super-interesting individuals. I have already interacted with most of them, and\u00a0cannot wait to read more from all. Ad maiora.\u00a0\n","comment_id":"24930","post_id":"6882","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 00:43","group_id":"5954"}},{"node":{"title":"I salute you! ","content":"\nWhat a great bunch of people! One of the perks of working with Edgeryders is that we come within line of sight of all these super-interesting individuals. I have already interacted with most of them, and\u00a0cannot wait to read more from all. Ad maiora.\u00a0\n","comment_id":"24930","post_id":"6882","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 11, 2016 - 00:43","group_id":"5954"}},{"node":{"title":"Makes sense","content":"\nWhat you write makes sense. People already think in this way to some extent, there are some good examples in our team of 'doers' that are very aware that they don't like to do the 'thinking' etc. I often hear people talk about themselves in these (general)\u00a0categories and assume this awareness\u00a0is already more widespread.\nYet teams often still fail. Where lies the problem? Are we not taking the insight far enough?\n","comment_id":"24929","post_id":"6866","user_id":"8889","parent_comment_id":"0","creation_date":"Monday, October 10, 2016 - 20:09","group_id":"0"}},{"node":{"title":"Thanks ","content":"\nYes we are thinking about that 'piste', trying to bring together existing organizations!\n","comment_id":"24923","post_id":"6868","user_id":"9035","parent_comment_id":"0","creation_date":"Monday, October 10, 2016 - 15:19","group_id":"0"}},{"node":{"title":"Poland!","content":"\nI thought about you because of the recent protests in Poland. The idea I'm getting is this: tracking \"shadow\", informal, semi-legal initiatives on care means mapping both need and capacity. It carries information on what people think is important, and on the amazing self-organising ability of communities.\u00a0\nWhat we need is a true voice. I got the info from an article. It is a good article, there's a good story but no one behind it we can go back to for more. I was hoping you'd be able to track someone who is personally involved in this service (or others, connected to reproductive health and well-being) who would jump in and comment, or share some more experience. Poland, I would say, is a good place to start.\u00a0\n","comment_id":"24919","post_id":"6874","user_id":"34","parent_comment_id":"24916","creation_date":"Monday, October 10, 2016 - 10:06","group_id":"0"}},{"node":{"title":"@Alberto, with pleasure - do","content":"\n@Alberto, with pleasure - do you want me to look specifically at the abortion by-paths?\u00a0\n","comment_id":"24916","post_id":"6874","user_id":"678","parent_comment_id":"0","creation_date":"Monday, October 10, 2016 - 08:36","group_id":"0"}},{"node":{"title":"Wrong guy","content":"\nI am no cyclist, and have left the country five years ago. \u00a0So no, I guess I am not the right person. \u263a\n","comment_id":"24914","post_id":"6796","user_id":"34","parent_comment_id":"24913","creation_date":"Saturday, October 8, 2016 - 19:26","group_id":"0"}},{"node":{"title":"early adopters","content":"\nYes @Alberto that's the key and why we do a FES cycling event. We also need marketing guys to promote and recruit (we have not been effective at that). Can you or others help out?\n\u00a0\n","comment_id":"24913","post_id":"6796","user_id":"8837","parent_comment_id":"24841","creation_date":"Saturday, October 8, 2016 - 17:53","group_id":"0"}},{"node":{"title":"Mapping","content":"\nHi @Alberto, you are very right.. However I have been cycling around milano on tandem with a trailer (thats a long veicule) and two kids. I've learned that the trick is to know where to go\u00a0and its a challenge (https:\/\/edgeryders.eu\/en\/can-we-hack-or-tweak-maps-to-help-where-infrastructure-fails-for-soft) we have to work on after our kick off event :http:\/\/wehandu.it\/it\/fesbici\/\n\u00a0\n\u00a0\n","comment_id":"24910","post_id":"6796","user_id":"8837","parent_comment_id":"0","creation_date":"Saturday, October 8, 2016 - 14:01","group_id":"0"}},{"node":{"title":"Milan cycling event","content":"\nKickoff event\nhttp:\/\/wehandu.it\/it\/fesbici\/\n;-)\n","comment_id":"24909","post_id":"6667","user_id":"8837","parent_comment_id":"0","creation_date":"Saturday, October 8, 2016 - 13:52","group_id":"0"}},{"node":{"title":"Trust","content":"\nHow can we create a better health system if we need all kind of difficult systems to create the trust that isn\u2019t there really?\nWow, @Alkasem , this is a\u00a0really interesting take on things. I agree 100% with you on this.\u00a0\nI never lived in the Middle East, so I do not have your experience. But it doesn't look like the West lacks trust. All our societies run on trust; and normally such trust is rewarded, because we are rule-abiders: we stand in queues, show up for work and at school (resaonably)\u00a0on time, and do not really cheat. Cheating is quite rare.\nSo: can you say more about the lack of trust you see? What is it that is done differently in Syria?\u00a0\n","comment_id":"24903","post_id":"6870","user_id":"34","parent_comment_id":"0","creation_date":"Friday, October 7, 2016 - 23:35","group_id":"0"}},{"node":{"title":"Tr\u00e8s jolie id\u00e9e...","content":"\n... mais est-ce que avez pens\u00e9\u00a0comment\u00a0elle se peut r\u00e9aliser? Est-ce que il y a quelque chose que nous pourrions faire pour la rendre en peu plus proche?\u00a0\n","comment_id":"24902","post_id":"6865","user_id":"34","parent_comment_id":"0","creation_date":"Friday, October 7, 2016 - 23:22","group_id":"0"}},{"node":{"title":"A toolbox filled yes :)","content":"\nthe reaction give me the idea to share it with some people that i know organize game jams. It could be an interesting theme for them. Will see what comes out.\u00a0\n\nIt was after the discussion with Lotfi and Alkasem about the elderly that this project popped back in my mind. Not everything can be a success story, but at least can be shared to become a learning moment :)\n","comment_id":"24890","post_id":"6864","user_id":"8743","parent_comment_id":"0","creation_date":"Friday, October 7, 2016 - 16:09","group_id":"0"}},{"node":{"title":"Isn't it easier to join an existing project?","content":"\nHi @R\u00e9seauxSolidaires, it was great to meet both of you in Brussels. Sorry for writing in English, it comes easier to me.. \u00a0I am wondering whether it isn't easier to join forces with another group\u00a0in town working already on this? If it doesn't do the very human approach you are arguing for, perhaps making a project with them is a first step. Remember our last session at HUIS VDH where this was an advice we shared with each other?\nBonne chance!\n","comment_id":"24889","post_id":"6868","user_id":"32","parent_comment_id":"0","creation_date":"Friday, October 7, 2016 - 15:42","group_id":"0"}},{"node":{"title":"Activism, social biz cargo bikes, intergenerational care..","content":"\n..what else have you been involved in over the years Yannick? :-) You're carrying quite a toolbox of projects.\nI see cowork spaces and hubs going for gaming nights targeted at youth, but it would look even better if they\u00a0opened up the participants' age to include older people - maybe less pc and console\u00a0games and more board games? The latter\u00a0tend to be more social quicklier. Will keep your thoughts in mind.\n","comment_id":"24888","post_id":"6864","user_id":"32","parent_comment_id":"0","creation_date":"Friday, October 7, 2016 - 15:33","group_id":"0"}},{"node":{"title":"Welcome.","content":"\nHi @ParamountCaliforniaUniversity how come you joined Edgeryders? Ours is more a community of people, so if you would consider changing your username into a more personal one that would be super, it helps people connect to you\/\u00a0\n","comment_id":"24880","post_id":"6863","user_id":"32","parent_comment_id":"0","creation_date":"Friday, October 7, 2016 - 12:23","group_id":"0"}},{"node":{"title":"Yes there is a story in the making about it","content":"\nWill be published today or tomorrow\n","comment_id":"24879","post_id":"6821","user_id":"8743","parent_comment_id":"24865","creation_date":"Friday, October 7, 2016 - 12:06","group_id":"0"}},{"node":{"title":"Inspiring","content":"\nThis is really nice to hear. Was just talking with 2 of my Syrian friends and they said it's very important to give some self inniciative push to the newcomers, because they are just being sent from a place to a place to fill this or that form and they become somehow passive, so helping them stay active and creative is super important. Like your approach a lot.\n\nI am working on this project\u00a0\u00a0and would like to see how we could collaborate. Maybe you could introduce them to online platfrom for connecting to other newcomers that are here a bit longer and are starting with their self employment or small business and need volunteers or potencial partners... or they can maybe see what are local businesses searching here, to get a better feeling of what is smart to focus on for the future and what skills will they need to learn in order to build a nice future for themselves.\n\nPlease, if you have time, check a bit what we do and I would be happy if we find some common points for collaboration :)\n","comment_id":"24877","post_id":"6514","user_id":"8950","parent_comment_id":"0","creation_date":"Thursday, October 6, 2016 - 17:55","group_id":"0"}},{"node":{"title":"Thanks guys","content":"\nAlex, this is so nice to hear, please stay in touch and let's push things forward... Thanks also for the link, will check them out and see how we could connect :D\nNoemi, cool, thanks. Sounds very interesting. Reading...\n\n\u00a0\n","comment_id":"24876","post_id":"6831","user_id":"8950","parent_comment_id":"0","creation_date":"Thursday, October 6, 2016 - 17:44","group_id":"0"}},{"node":{"title":"Impressive","content":"\nGreat work. \u00a0I salute you.\n","comment_id":"24875","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Thursday, October 6, 2016 - 17:25","group_id":"5954"}},{"node":{"title":"Impressive","content":"\nGreat work. \u00a0I salute you.\n","comment_id":"24875","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Thursday, October 6, 2016 - 17:25","group_id":"5954"}},{"node":{"title":"Happy to see things are moving ","content":"\nKeep up the great work! My advice is that for each post you include a call to action to the broader community where you ask for help. That also makes it easier to reach to the specialists in here, which \u00a0we do manually, sort of.\n","comment_id":"24870","post_id":"6844","user_id":"32","parent_comment_id":"24838","creation_date":"Wednesday, October 5, 2016 - 19:47","group_id":"0"}},{"node":{"title":"Good to meet you!","content":"\nHi Frank, thanks for introducing yourself and for joining OpenandChange project of projects so to speak, in such great capacity. Woodbine rocks\u00a0:)\n","comment_id":"24868","post_id":"6786","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, October 5, 2016 - 17:07","group_id":"0"}},{"node":{"title":"Dates for a future meetup","content":"\nI\u00a0have to fly back to Bxl in a month time and so would be great to reconnect! If anyone is following up with participants, do include me please :-)\n","comment_id":"24866","post_id":"6821","user_id":"32","parent_comment_id":"24740","creation_date":"Wednesday, October 5, 2016 - 16:31","group_id":"0"}},{"node":{"title":"I'm glad I came.","content":"\n\"First you squad, then you talk\" \u00a0- Loic's presentation was great, too bad we don't have the full story here to be able to connect more people to it.\n@Yannick is the story by any chance in the making?\n\u00a0\n\u00a0\n","comment_id":"24865","post_id":"6821","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, October 5, 2016 - 16:30","group_id":"0"}},{"node":{"title":"Nope, sorry!","content":"\nWorking in the\u00a0area of homelessness I'm only aware of\u00a0DOUCHEFlux as a partner in the proposal.. but I may be wrong.\nMaybe @Yannick can clarify?\n","comment_id":"24864","post_id":"6827","user_id":"32","parent_comment_id":"24840","creation_date":"Wednesday, October 5, 2016 - 16:26","group_id":"0"}},{"node":{"title":":D","content":"\nOk, Alberto, probabilmente il \"meccanismo\" \u00e8 un poco inusuale per dare mobilit\u00e0 alle persone, ma potrebbe essere comunque interessante partire da ci\u00f2 che abbiamo a disposizione ...magari chiedendo ai ragazzi dell'ETH di Zurigo un aiutino!\nPer il collegamento, prova partire da http:\/\/www.gennymobility.com\/it.\n","comment_id":"24849","post_id":"6438","user_id":"8523","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 20:40","group_id":"0"}},{"node":{"title":"Done that! ","content":"\nIn fact you were involved in that conversation... see the comments, too:\nhttps:\/\/edgeryders.eu\/en\/step-up\n","comment_id":"24845","post_id":"6854","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 17:43","group_id":"0"}},{"node":{"title":"Bello, molto!","content":"\nGrazie,\u00a0@Francesco_Maria_ZAVA . La sedia a rotelle con i cingoli\u00a0che si vede nel secondo link mi ricorda certi strumenti che si usano nel trasloco dei pianoforti, e che possono trasportare carichi pesanti (e con il baricentro alto, perch\u00e9 i pianoforti vengono messi in verticale per risparmiare ingombro) su per le scale. Fanno perfino gli angoli sui pianerottoli!\u00a0\nIl link a gennymobility risulta rotto.\u00a0\u00a0\n","comment_id":"24844","post_id":"6438","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 16:50","group_id":"0"}},{"node":{"title":"Same as Noemi","content":"\nHello @wave , I also was intrigued by this idea, but I don't get it. As far as I know, noise cancellation is predicated each one of us having a \"personal\" source of reverse-phase sound waves: my headphones, for example. They sample ambient noise (the hum of an aircraft's or train's engine), reverse the sample's phase and emit it in my ears. Your idea of emitting at the source is quite novel, at least I have never heard of it. Would love to know more!\u00a0\nAlso, as Noemi says, existing noise canc technology works best at cancelling steady white noise-type sound emissions.\u00a0\n","comment_id":"24843","post_id":"6844","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 16:29","group_id":"0"}},{"node":{"title":"The virtuous cycle of non-excluded people blazing the trail","content":"\nTraffic is\u00a0scary, for everyone. In my home region, Emilia-Romagna, we have a strong cycling tradition \u2013 it is unusually flat for Italy, and that helps.\u00a0When I moved to Milano in 2001, I found cycling much more difficult because of a deadly combination of cobblestones, tram tracks and just sheer traffic nastyness.\u00a0Bicycle lanes where almost absent. As a consequence, only \"extreme cycling\" happened: young, fit\u00a0men who wore tactical backpacks, army boots and yelled at drivers, and even kicked at their cars. I could just about cope: my (Swedish) wife refused to cycle, saying it was too dangerous. Extreme bikers did things like this:\n\nBut over the years those extreme people have become sort of cool. A company called Urban Bike Messengers established a bicycle-based delivery service. They cultivated an image of green, cool and a bit scary. Rumour was that, to become a messenger, you had to pass a near-impossible test of crossing the city only in minutes. This encouraged more people to go out and bike. This, in turn, made biking a little safer for everyone, because drivers learned to be a little more attentive. So even more people got out. By the time I left the city, the Decathlon shop in Cairoli was selling 50 to 100 bicycles\u00a0a day.\u00a0Eventually, the city council started to take\u00a0cyclists a bit more seriously; traffic was restricted in the center, some slightly better bike lanes appeared.\u00a0\nWhat this story has to teach is that, perhaps, if you want to make life better for paraplegics you have to start from the urban sport enthusiasts. Which is, after all, the same old story of finding a group of\u00a0early adopters that pave the way (literally, in this case) for everyone else.\n","comment_id":"24841","post_id":"6796","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 16:15","group_id":"0"}},{"node":{"title":"Hello Naomi, I don't","content":"\nHello Naomi, I don't understand. We have worked with Yannick for the OpenandChange. Have you not seen our applicant ?\u00a0\n","comment_id":"24840","post_id":"6827","user_id":"9013","parent_comment_id":"24815","creation_date":"Tuesday, October 4, 2016 - 15:46","group_id":"0"}},{"node":{"title":"One issue reveals another","content":"\nDear @Noemi. We are working hard on testing the Hybrid bike as a kickoff party together with WeMake (@Costantino, @Moushira) sharing with OpenCare, demonstrating feasibility of the WeHandU approach. As @Michel says, infrastructure is an issue especially in Italy. (what country are you in?). I know Belgiun like Holland is organized for soft mobility. You just have to fix some weather issues, where Milano has sun all in the plain but no consideration of planning safe infrastructure for cyclists, pedestrians etc.\n@WinniePoncelet, it could be very good if you could elaborate on why you don\u2019t have handbikers around because the berkelbike is dutch so It would be easy for people around you to get?\nYou have a good point,@WinniePoncelet, \u00a0we could imagine raising funds to have a FES bike that people could try locally.\nI\u2019ve learned two things recruiting wheelchair users as testdrivers\n1. There is a perception that it may be physically harmful\n2. People are afraid of traffic. There is a perception that there are nowhere to use the a Handbike\nAs for 1. it shows the importance of having clinicians who can evaluate physical aptness for this exercise weighted against the alternative (cardiovascular diseases, pressure sores etc.)\nAs for 2. We need a method of showing where it's possible to go safely, (Google maps in italy does not support cycling). \u00a0@Francesco Maria ZAVA\u00a0and others we could\u00a0work on this\n","comment_id":"24839","post_id":"6796","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 14:57","group_id":"0"}},{"node":{"title":"Hi Noemi,","content":"\nHi Noemi,\nWe are a group of students from Master of Interaction Design at Domus Academy. We are now working on Opencare project in colabration with WeMake FABLab in Milano. We have a lot of ideas we know :)\u00a0\nThis idea has some difficulties about reversing technology which is already there (sound cancellat\u0131on). The way we wanted the prototype to work is that if we can use the existing technology of noise cancellation to design something that can be put on the baby in order to reduce their noise. We can further d\u0131scuss how we were proposing to use the noise cancellation technology here, but for now we have kept this project on hold.\u00a0\nActually we kept every project on hold and we are currently working on\u00a0the Alzheirmer's Wristband. It is in process now :)\n","comment_id":"24838","post_id":"6844","user_id":"9021","parent_comment_id":"24810","creation_date":"Tuesday, October 4, 2016 - 13:39","group_id":"0"}},{"node":{"title":"Thanks for sharing this @Rune","content":"\nThanks for sharing this @Rune. I cannot begin to imagine how good it must feel for someone with paralyzed legs to bike independently\u00a0again.\u00a0We have\u00a0good biking infrastructure in my city\/Belgium in general, but I rarely see handbikes actually.\u00a0\nAbout where to try\u00a0the FES bikes: are the bikes\u00a0customized to the user? Or could you imagine a network of users who are up for letting others test their bike from time to time. On top of that people meet and connect, they are more involved and it's not a huge cost for anyone.\n","comment_id":"24837","post_id":"6796","user_id":"8889","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 13:09","group_id":"0"}},{"node":{"title":"Can we go further about that? ","content":"\nit's really amazing, nice job @Rune, in my country there is a lot of people who suffer from weakening leg muscle and poliomelite. \u00a0Those people are usually left aside and need someone's hand to move. On the other side, infrastructure and access to office, public area are not yet developed.\n","comment_id":"24836","post_id":"6796","user_id":"8857","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 12:09","group_id":"0"}},{"node":{"title":"gathering ","content":"\nIn my extra time I, and a gathering of others, slither under extensions and stroll through back roads in downtown Atlanta and drag drunks, heroin addicts, meth addicts and break takes off in the sun and encourage them. The vast majority of them would prefer not to recuperation however a couple of them do. We help the ones who do and the greater part of them stay straight.I additionally volunteer my time with an www.assignmenthelpdeal.co.uk\/ association in Atlanta that medications addicts and those crisp out of jail standardize themselves into society. Initially, we get them a new combine of garments and a shower. We help them discover their introduction to the world authentications and other individual documentation. Next, we place them in contact with a shelter where they can live. We have two production lines. One makes mops. We let them know that they should appear for work ordinary, ON TIME, for $6.00 every hour. Following 6 months, we place them in the machine parts producing division for $10.00 every hour. Following a year, they have resumes, clean garments and a spot to live. This entire project is self-financing.\n","comment_id":"24835","post_id":"6752","user_id":"9032","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 11:50","group_id":"5954"}},{"node":{"title":"gathering ","content":"\nIn my extra time I, and a gathering of others, slither under extensions and stroll through back roads in downtown Atlanta and drag drunks, heroin addicts, meth addicts and break takes off in the sun and encourage them. The vast majority of them would prefer not to recuperation however a couple of them do. We help the ones who do and the greater part of them stay straight.I additionally volunteer my time with an www.assignmenthelpdeal.co.uk\/ association in Atlanta that medications addicts and those crisp out of jail standardize themselves into society. Initially, we get them a new combine of garments and a shower. We help them discover their introduction to the world authentications and other individual documentation. Next, we place them in contact with a shelter where they can live. We have two production lines. One makes mops. We let them know that they should appear for work ordinary, ON TIME, for $6.00 every hour. Following 6 months, we place them in the machine parts producing division for $10.00 every hour. Following a year, they have resumes, clean garments and a spot to live. This entire project is self-financing.\n","comment_id":"24835","post_id":"6752","user_id":"9032","parent_comment_id":"0","creation_date":"Tuesday, October 4, 2016 - 11:50","group_id":"5954"}},{"node":{"title":"is it healthy or not?","content":"\n\u00a0Very interesting, perhaps you can qualify that in terms of how it helps or not those experiencing it? And can it be a collective process? With OpenCare at large, and Open&Change more specifically- it would be most remarkable to understand what task is there for communities to relief some of this experiences.. Have a look at Cosain - an initiative just starting in Ireland which is based on peer to peer support for mental health recovery, in very collective ways.\u00a0Highly recommended partners for some of your activites I think..\u00a0\n","comment_id":"24829","post_id":"6713","user_id":"32","parent_comment_id":"24781","creation_date":"Monday, October 3, 2016 - 18:20","group_id":"0"}},{"node":{"title":"Sharing experiences between Ireland, Greece and other places","content":"\n@MAZI I figured you might want to read this.\u00a0Thom, @Bernard @Teresa_Nilan and their team are incredibly committed to this project and I see you guys comparing notes.\nFor reference, MAZI's story also makes a\u00a0compelling case for peer support groups and they run these gatherings in both Athens and Thessaloniki. It seems to me they also have had some successes with funding coming in.\n","comment_id":"24828","post_id":"6794","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 18:13","group_id":"0"}},{"node":{"title":"Can we get this story to your proximity in Italy?","content":"\nThanks @Rune, impressive how people find their way and maybe mobility doesn't have to be such an exclusionary issue after all. \u00a0I'd appreciate if you, your team and the WeMake team also share this with some of the people engaged so far in OpenCare,\u00a0more minds put together will come up with super insights and helpful advice.. Let's do this.\nPing @Rossana Torri to help us reach to some key networks in the city. Thanks!\n","comment_id":"24827","post_id":"6796","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 17:57","group_id":"0"}},{"node":{"title":"Let's spread the word?","content":"\nThanks @ninabreznik and co.! \u00a0I'm just back online after a few days off the platform, and\u00a0say we take these days to share your post.\nAlso ping @Tomma who is close to some people in the ICC camps\u00a0and has done great work herself\u00a0- right up your street dear? \u00a0Help us share this?\n","comment_id":"24823","post_id":"6831","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 16:42","group_id":"0"}},{"node":{"title":"Thank you!","content":"\nIn fact it is an \"international Idea\" of various people living around the globe but are somehow connected to developemental issues, many of them\u00a0 who are in contact with \"Integral Theory\" and \"System Sciences\"...\nThere are Nuklei in formation in Germany, Spain and one possibility in Greece. This Nuklei schare common iseas about kooperative, solidary ideas about the next level of human development and are willing to act as facilitators and \"pioneering projects\" regarding new social and care models. So in it#s very own way CAPE is as well a synergy hub - which of course can be connected to others. Hope this will answer your question.\nI will check your recommendation as well.\nOther than the project you mentioned we are building a fuctional model with real people (CAPE) and make different kinds of \"open\" knowlege availabel for a broader group as well as developing alternative strategies... (humaniversity project within CAPE).\n","comment_id":"24818","post_id":"6820","user_id":"8982","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 15:09","group_id":"0"}},{"node":{"title":"Are more photos of interventions available?","content":"\n@Imagine the City hi. Thanks for being so generous with your thoughts, especially as a newcomer to this platform. If you are based in Thessaloniki (or are you in Chalkis?), you probably know the ladies at @T\u00f3pio who are working with schools on creative redos of public spaces?\nHow do you manage to stay independent if you\u2019re involving such different groups and people? After a while if your \u201crecipe\u201d for events is compelling and people self-organise to follow it, your events will have a life of their own and may be able to move off the grid. Do you coordinate in any way?\n","comment_id":"24817","post_id":"6802","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 14:57","group_id":"0"}},{"node":{"title":"Oops, a day late for OpenandChange!","content":"\nHello @Streetnurses,\u00a0welcome to Edgeryders and OpenandChange, we have already submitted the application (unless you joined with a different project and I am not recognising you),\u00a0but if things go well in this first phase and we get to be semi-finalists we will of course get in touch. In it we are saying that over the next two years 150 projects will be running activities to become more solid, sustainable and even generate some source of income.\u00a0\n\u201c..because of our high costs of wages it is difficult to fund foundations that are willing to support us\u201d What do you mean by that? For example the MacArthur funding would allow personnel costs, and most large grants that I know of.\nOh, I almost forgot. My name is Noemi, community manager, and my own answer to the challenge \u201cHow do you give and receive care?\u201d is here, I wrote it a few months ago should you be interested to exchange notes. Let\u2019s stay in touch.\n","comment_id":"24815","post_id":"6827","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 14:23","group_id":"0"}},{"node":{"title":"Welcome!","content":"\nHello @samadhi.0110 and welcome to Edgeryders. How did you learn about us?\nAre you based in Greece? I\u2019m not sure how I can help because I don\u2019t understand the context, the problem which the CAPE project is trying to solve: \u201cPeople feel lost in the cacophony of\u00a0indusrial, per profit and political chatter\u201d \u2013 this looks broad! I would recommend you check out\u00a0someone @rainbowheart and his piece about his community\/ synergy hub in Mont Soleil.\u00a0\nWhere would your living space be? Or is that already ongoing?\n","comment_id":"24812","post_id":"6820","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 13:39","group_id":"0"}},{"node":{"title":"How would it work exactly?","content":"\nHey @wave, fun fact: I was reading about your idea as I was flying and thinking how my next big purchase should be a set of noise cancelling headphones.To be clear: not necessarily because of crying babies :-)\u00a0Yet I don\u2019t understand how it would work because of the very uneven cries and peak sounds which are hard to counteract. Tell us more.\n","comment_id":"24810","post_id":"6844","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 13:31","group_id":"0"}},{"node":{"title":"Where did you get the idea?","content":"\nHi @wave how\u2019s it going? I don\u2019t think we\u2019ve met yet, I\u2019m Noemi one of the Edgeryders community managers. Thanks for taking so much time to read and post here on the platform, even though I\u2019ve been traveling and couldn\u2019t react, definitely catching interest.\nSo what\u2019s your story, how did you become interested in pretty cool ideas like the T shirts?\n","comment_id":"24809","post_id":"6842","user_id":"32","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 13:22","group_id":"0"}},{"node":{"title":"A \"simple\" idea.","content":"\nIndubbiamente, costruire basi di dati ed applicazioni mobili finalizzate alla mappatura del territorio \"accessibile\" e \"non accessibile\" pe quanti si avventurano nelle nostre citt\u00e0 ed intendano usufruire dei loro molteplici servizi (vedi http:\/\/portale.siva.it\/it-IT\/databases\/libraries\/detail\/id-455), incontra la mia pi\u00f9 totale ammirazione e gratitudine.\nTuttavia, sicuramente anche per un moto di orgoglio e per un inalienabile desiderio di libert\u00e0 e di riconoscimento del mio essere cittadino, ritengo occorra adottare un approccio complementare che cerchi di risolvere le specifiche esigenze di ciascun individuo, laddove le barriere materiali sussistono e rinforzino quelle culturali, realizzando soluzioni che consentano al nostro ausilio di disimpegnarsi in sicurezza oltre che con efficienza.\nA questo scopo, nonostante non abbia competenze tecniche in materia, sto provando a realizzare un concetto partendo da questi esempi:\n1. http:\/\/www.gennymobility.com\/uk\/genny\/design;\n2. http:\/\/www.newmobility.com\/2015\/06\/stairclimbing-wheelchairs-fact-and-fiction\/.\nL'idea di base \u00e8 quella di realizzare un sistema di mobilit\u00e0 modulare, parzialmente cucito su misura per alcune tipologie di utenza, che possa superare le \"difficolt\u00e0\" del terreno e nel contempo costituire un concentratore di servizi e funzioni avanzate (comunicazione, monitorizzazione parametri, controllo ambientale di casa e postazione lavorativa, ecc.).\nCerto, questo \u00e8 chiedere le stelle... ma potrebbe essere l'inizio costruendo quanto meno la rampa di lancio!\n---------------------------------------------------\nUndoubtedly, build databases and mobile applications aimed at mapping the territory \"accessible\" and \"inaccessible\" eg those venturing into our city and intend to take advantage of their multiple services (see http:\/\/portale.siva.it\/it- He \/ databases \/ libraries \/ detail \/ id-455), meets my utter admiration and gratitude.\nHowever, certainly for a surge of pride and an inalienable desire for freedom and recognition of my being a citizen, I believe we must adopt a complementary approach that seeks to address the specific needs of each individual, where the material barriers exist and reinforce cultural ones , creating solutions that allow to our aid to disengage safely than with efficiency.\nTo do so, despite not having technical expertise in the field, I'm trying to create a concept starting from these examples:\n1. http:\/\/www.gennymobility.com\/uk\/genny\/design;\n2. http:\/\/www.newmobility.com\/2015\/06\/stairclimbing-wheelchairs-fact-and-fiction\/.\nThe basic idea is to realize a modular mobility system, partially sewn tailored to some categories of users, which can overcome the \"difficulty\" of the soil and in the same time constitute a concentrator of services and advanced features (communication, monitoring parameters , environmental control of the home and work place, etc.).\n\nOf course, this is to ask the stars ... but it could be the start of building at least the launching pad!\n","comment_id":"24806","post_id":"6438","user_id":"8523","parent_comment_id":"0","creation_date":"Monday, October 3, 2016 - 11:34","group_id":"0"}},{"node":{"title":"Learning more about Flipped job market ? ","content":"\nNice to meet you @Henrike, and welcome online, I'm Noemi, a colleague of Caroline's, Jahn's and the crew, and have participated in the same\u00a0format event\u00a0in Brussels.\u00a0Thanks to the group for organising and facilitating this workshop, and for tweeting during the day! Our workshop in brussels was happening at the same time and it was lovely to join forces, albeit virtually! Speaking of, I would be curious to learn about the initiatives of those who participated, any one\u00a0that you liked in particular and feel you will be able to collaborate with in the near future? Hopefully some of these days we get to learn more about Flipped job market, I read you referencing elsewhere here on Edgeryders and from the site\u00a0looks very interesting, except unfortunately I don;t understand German. Let me know if I can help in any way.\n\n","comment_id":"24800","post_id":"6828","user_id":"32","parent_comment_id":"24763","creation_date":"Sunday, October 2, 2016 - 02:22","group_id":"0"}},{"node":{"title":"From the Nidiaci","content":"\nThank you for your comments.\nOur garden is theoretically for children, then for their families. Which means that...\nThe outstanding feature of our experience is the fact that we are not an intellectual or \"political\" movement, but the ordinary people of this district: a cross-section of families of both traditional and immigrant background, who take their children to the garden (basically a playground with trees). Everybody except the very, very rich.\nHowever, we opened this garden in a situation of conflict, an object lesson for everybody on gentrification and the ruthlessness of real estate speculation: we did not put the politics into it, they did, and everybody has learned the lesson.\nCommunities can be built on imagining the past, children help us to imagine the future together and learn to build solidarity - we love our place and its history, but anybody from\u00a0Senegal or from\u00a0Germany who also loves them is welcome;\u00a0\nIn this context, we do small things with major implications, for example:\n- markets where parents give and take children's clothes for free, which teaches one enormously important things about the wastefulness of our society;\n- violin lessons, chess\u00a0and opera singing because we believe that \"beautiful\",\"elegant\" and \"difficult\" things should not be the monopoly of a financial elite;\n- the only free football school in Florence, thanks to the unique Lebowski football team;\n- attempting to revive the dying crafts of Florence and discover the history of our district, with all its tremendous historical implications;\n- we are trying to find a way to set up a cooperative to give work to the many families who have skills, but are being driven off the job market;\n- we are beginning to develop more sustainable ways of consumption, in a gradual way that everybody can understand, also thanks to the fact that we have a child's birthday party nearly every day in our garden! And a child's birthday party is a much better place to deal with these issues, than a smoke-filled meeting hall...\nWhatever we do, we try to move together with as many other organisations as possible in our district - ranging from the parish church to the young people occupying an abandoned house, to small shopkeepers, to the very, very\u00a0special Florentine institution of \"Calcio Storico\".\nWe also want to provide the lowest level of basic services, which the \"state\" is dropping out of, and this is where the issue of health and other care interests us.\nThe institutions first saw us as a harmless group of parents who wanted a place for their children to play,\nthen more or less as enemies,\nthen as a large group\u00a0of voters who need to be humoured, as well as people who do for free what the state usually has to pay for.\nWhich is alright, we\u00a0neither hate nor love the dying institutions of our times.\nWe love our people, our monuments, our trees, our bats and cats that come at night, and\u00a0anybody else in the world who feels like us and realizes that this world should not belong to speculating private monsters or to cold public machines.\u00a0\n","comment_id":"24798","post_id":"6825","user_id":"9012","parent_comment_id":"0","creation_date":"Saturday, October 1, 2016 - 19:58","group_id":"0"}},{"node":{"title":"Benvenuti (e alcune domande)","content":"\nCiao @Amici del Nidiaci!\u00a0\nAn Italian myself, I know\u00a0Florence a bit and understand how it must feel to you. Great that you are taking action! So, from what I understand, your action revolves around coming together to maintain a community garden.\u00a0\u00a0Can you tell us more about that? Is it mostly gardening, or do you do other activities too?\nHere in Edgeryders, we have a few\u00a0experiences which are\u00a0somewhat similar. One\u00a0is Prinzesinnengarten in Berlin. They sell food, run a small caf\u00e9 and give courses in gardening. Real estate speculation is a problem for them, too. Here is the full story: @marcoclausen is one of its protagonists and could tell you more.\u00a0\nThe other one is Vake Park in Tbilisi, Georgia. In\u00a0this case, a community formed specifically to protect the park from speculation. Among its leaders were @Nick Davitashvili and others: here is Nick's\u00a0beautiful\u00a0TEDx talk.\nLooking forward to hear from you!\u00a0\n","comment_id":"24795","post_id":"6825","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, October 1, 2016 - 16:26","group_id":"0"}},{"node":{"title":"We are part of a 85-minute documentary!","content":"\nWhat if working together for the good of all was the most common business model? Discover A new Economy, starring seven initiatives including Sensorica and ours.\nThanks @Positive-Voice for your comment. :)\n","comment_id":"24791","post_id":"6728","user_id":"8955","parent_comment_id":"0","creation_date":"Friday, September 30, 2016 - 20:13","group_id":"0"}},{"node":{"title":"First interview of participants released","content":"\n@Noemi, the first interview was released yesterday on our channel and we will release one per week! :)\n@Michel we started with CF and asthma but the idea is that projects emerge in different places. As a patient said, its a doctor's thing to separate diseases... but usually, asthma, allergies, etc are mixed. And yes it will include also games about good breathing and hopefully, people not affected with diseases can also become more aware about their health and invest in prevention. ^^\nWe are working on the outcomes to be shown, for example visualizing the evolution of lung capacity, effects of doing therapy or not, etc.\n","comment_id":"24472","post_id":"6728","user_id":"8955","parent_comment_id":"0","creation_date":"Friday, September 30, 2016 - 20:10","group_id":"0"}},{"node":{"title":"preventive mourning","content":"\nPreventive mourning was used as a concept,\u00a0\u00a0and was the theme of one of the experiental workshops during our psychotherapeutic encounters at village psy.\u00a0During these workshops\u00a0which took place in nature,up in the mountain of the Centaurs -where Centaur Chiron the wounded therapist is said to have llived\u00a0-we were exploring various aspects of trauma.\nPreventive mourning is\u00a0the \u00a0symbolic or realistic expectaction of loss which\u00a0 awakens practices of mourning which are in many ways different than mourning after the loss\u00a0. There are various questions one can ask around\u00a0this topic,\u00a0\u00a0which essentially \u00a0focuses on what it means for an individual to\u00a0envisage and feel \u00a0the losses that are about to come in ones life\u00a0.\nThe notion was thoroughly explored and many questions were asked:\u00a0 how do we as individuals react to this notion on a sentimental, cognitive, behavioural, relational level?which is the most difficult part of this experience for us?what experience can we draw from our own lives or our work? how does this impacts ones relationship with ones self and self awareness? how does is impact various aspect of our lives and on who we are?\nThe discussion concentrated around coping mechanisms that\u00a0we \u00a0\u00a0have drawn from our own experiences of trauma and\u00a0loss.\u00a0\u00a0We talked about what\u00a0\u00a0\u00a0\u00a0helped us\u00a0and \u00a0our clients \u00a0deal with what was happening at the time, and how we\/they changed after the experience.\u00a0Concepts such as life appreciation, meaninginfulness etc were also part \u00a0\u00a0of the discussion.\n\u00a0\n","comment_id":"24781","post_id":"6713","user_id":"8947","parent_comment_id":"0","creation_date":"Friday, September 30, 2016 - 10:03","group_id":"0"}},{"node":{"title":"BLOODe is in our blood too.","content":"\n@BLOODe we would like to help you to\u00a0create synergies and collaborations, so as to maximize the impact of your project. As for the costs of the logistics, for which, @Noemi did ask for, we would like to present you the volunteers' working team of several EVS groups in Europe who would lovely offer their services for good. Keep walking.\u00a0\n","comment_id":"24780","post_id":"6793","user_id":"8979","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 17:32","group_id":"0"}},{"node":{"title":"Frodizo means Care in Greek","content":"\n@Frodizo Really brilliant and moving what you do in Patra. Hope as for the elder people to be reliefing and refilling for their lifes too.\u00a0\nContinue the good work. We do support.\u00a0\n","comment_id":"24779","post_id":"6797","user_id":"8979","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 17:28","group_id":"0"}},{"node":{"title":"Breath is the Game","content":"\n@breathinggame, your story and goal really moving. Hope the expected\u00a0prototype testing goes. Impressive the amount of people and partners you brought on board.\u00a0\n","comment_id":"24778","post_id":"6728","user_id":"8979","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 17:21","group_id":"0"}},{"node":{"title":"@Matthias, I just came across","content":"\n@Matthias, I just came across this article about Washington's rivers... yet the situation not so much different from those we discuss here, and some tips how to engage in different ways with the area.\u00a0\n","comment_id":"24777","post_id":"6783","user_id":"678","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 16:49","group_id":"0"}},{"node":{"title":"Goal or means","content":"\nHi, @Federico Monaco\u00a0 seems supercool. \u00a0How could you see a collaboration with thE WeHandU\u00a0initiative?\n","comment_id":"24776","post_id":"6422","user_id":"8837","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 15:27","group_id":"0"}},{"node":{"title":"Preventive Mourning","content":"\nDuring the workshop, there were interesting ideas around the topic of \"preventive mourning\". Maybe @Village-Psy would like to share some more aspects on this topic?\n","comment_id":"24775","post_id":"6713","user_id":"8851","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 15:00","group_id":"0"}},{"node":{"title":"Flowing between projects","content":"\nMy observation is that many actors in Thessaloniki are active in more than one initiative, so there is this type of \"fluid\" flowing from one project to the other. Most of these people are characterising themselves as people \"that care\", and there is a strong sentiment of solidarity. Different groups have different approached on running their projects. For example, there are a few of them that mistrust any type of institutional suppport. This makes some people also get engaged\u00a0in another project. The result is a very diverse set of attitudes towards volunteer action and the wider frame of care, something that is making it difficult to map, engage and scale. This is probably the case also in Athens, however communities in the capital have more opportunities in terms of funding, interaction spaces and publicity.\n","comment_id":"24774","post_id":"6713","user_id":"8851","parent_comment_id":"24254","creation_date":"Thursday, September 29, 2016 - 14:57","group_id":"0"}},{"node":{"title":"Community land ownership","content":"\nHi Pavlos,\n'More power to your arm!'\nI found your point about the disconnect between wealthier Northern European countries and the reality of Greece particularly interesting and enlightening. What we consider to be 'alternative' approaches to the future should be our only way\u00a0forward.\ni am reminded of the saying \"when things seem to be falling apart, perhaps they are falling into place.\"\nIt seems that the Greek community could benefit from something like the Scottish Community Right to Buy scheme (http:\/\/www.gov.scot\/Topics\/farmingrural\/Rural\/rural-land\/right-to-buy\/Community) Which would allow communities to invest money, tiem and energy into innovative community practices safe in the knowledge that the land they do this upon will not be taken from under them in the event of a systemic failure.\nI do not know how easy it is to create law in Greece (i imagine it's as difciult as anywhere else!) but is this something that could be advanced at a high level? Just a thought\nAlex\n","comment_id":"24769","post_id":"6833","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 14:21","group_id":"0"}},{"node":{"title":"Fascinating and powerful","content":"\nThis sounds like a brilliant project.\nI really like how you saw that there was a matched experience between what you experience as young entrepreneurs and what the refugees experience arriving into the job market.\nMore power to you. I will certainly follow your project very carefully.\n\u00a0\nI wonder also if you know about Empower Hack. I think it is a UK based organisation, but it is doing similar work with women and girls (http:\/\/empowerhack.io\/)\n","comment_id":"24768","post_id":"6831","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 14:02","group_id":"0"}},{"node":{"title":"Hands on","content":"\nIts great to see the developement of your project... spreading out the idea and establishing it.\nPassioned and caring about the women: The ones\u00a0you work with and the women in general for getting access to a new kind of preventive breast cancer examination that is gentle and pleasent.\nThank you for your commitment :)\n","comment_id":"24764","post_id":"6818","user_id":"9019","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 10:11","group_id":"0"}},{"node":{"title":"getting connected","content":"\nIt was a great workshop with new and old friends. I loved the atmosphere there filled with passion and commitment. And also to see different perspectives and approaches of the other\u00a0projects aiming for the same impact: to promote health.\u00a0\nthank you for caring and sharing!\n","comment_id":"24763","post_id":"6828","user_id":"9019","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 09:48","group_id":"0"}},{"node":{"title":"thinking from the future","content":"\nI wrote my master thesis about the paradigm shift\u00a0in the working environment triggered by the\u00a0transformation into complexity (VUCA-World). In my journey to find answers for leadership I\u00b4ve learned about Otto Scharmer and Theory U. I love to find a project on that plattform which is connecting to that kind of thinking and using that approach.\nIn our project flipped job market we also take on the challenge for a new mindset in order to live the full potential with lies in every one of us.\n","comment_id":"24762","post_id":"6789","user_id":"9019","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 09:35","group_id":"0"}},{"node":{"title":"childlike curiosity and enthusiasm","content":"\nas I read\u00a0about your project I startet to think about the way children see the world and take on challenges... when we grow older,\u00a0we often loose the curiosity and enthusiasm we had as we were younger. Also the way we learn in school (at least as I remember it from my own schooldays) is based on facts and memorizing them. Getting to discover the miricales of life without judgement while seeking for ways to get further and learn to cope with difficulties is one of the most important thinks we got to teach each other... to challenge children to keep on thinking free and adults to get in that mood again.\nI love to see how your project is developing :)\n","comment_id":"24761","post_id":"6798","user_id":"9019","parent_comment_id":"0","creation_date":"Thursday, September 29, 2016 - 09:13","group_id":"0"}},{"node":{"title":"Food Related Links","content":"\nHi\u00a0@Jenny Gkiougki,\u00a0you might find interesting\u00a0this list of links collected by @elf Pavlik and others:\u00a0https:\/\/github.com\/ouisharelabs\/food-dashboard.\n","comment_id":"24753","post_id":"6776","user_id":"4760","parent_comment_id":"0","creation_date":"Wednesday, September 28, 2016 - 17:03","group_id":"0"}},{"node":{"title":"Hi and welcome :)","content":"\nSorry to hear about the park. Perhaps there is inspiration to be drawn from members of the community who are facing the \u00a0same struggles. So some people who immediatey\u00a0come to mind are:\n@jordan :\u00a0https:\/\/edgeryders.eu\/en\/the-urban-shepherd-of-stockholm\n@Nick Davitashvili:\u00a0https:\/\/edgeryders.eu\/en\/better-and-bigger-collective-action\nThis work of building and caring for communities is challenging.\n\u00a0\nAs @marcoclausen points out\n\u00a0@marcoclausen, @ecl and @Caroline have alot of experiences in Berlin: See their stories here. But this kind\n\u00a0\n","comment_id":"24747","post_id":"6825","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, September 28, 2016 - 15:48","group_id":"0"}},{"node":{"title":"In Sweden it's picking up but still there is a difference ","content":"\nNot sure what the data is on what percentage of fathers take parental leave and how long. I'll as around if you want?\n","comment_id":"24741","post_id":"6781","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, September 28, 2016 - 13:02","group_id":"0"}},{"node":{"title":"Cecile took photos of with the dates on them I think?","content":"\nHey @WinniePoncelet was really nice meetin you, makes me happy to hear you liked the workshop :)\nSo about the dates. People put up their possible dates on post its\u00a0on the imaes and stories we printed and hung uo. I'm in Washinton DC at the moment and cannot access them. But I think Cecile took photos of them. If someone can go through them and aggregate the dates then we can send out a doodle with suggestions for people pick from.\u00a0@Yannick has them I think...\n","comment_id":"24740","post_id":"6821","user_id":"45","parent_comment_id":"24737","creation_date":"Wednesday, September 28, 2016 - 12:43","group_id":"0"}},{"node":{"title":"Is there a recipe?","content":"\nMy sister lives in classical Cit\u00e9 house\u00a0in Ghent. Cit\u00e9 houses\u00a0are small, cheap houses that were built for\u00a0the former poor working classes\u00a0back in the day. They are mostly\u00a0built in a way that allows more interaction between the inhabitants. There is\u00a0a shared open space in the middle, which is free of traffic and is usually filled in with things people chose: tables, barbecues, little gardens, ...\nThe cit\u00e9 where my sister lives is very lively. There are\u00a0a lot of social interactions because people spend a lot of time outside, organise things together, borrow stuff, etc. Everyone knows everyone.\nThen again, this is a lot less the case in the cit\u00e9 right next to my sister's. People don't interact that much and the social ties aren't as rich. I'm not sure what causes this, because the same basic elements are there. Does it come down to the people? What do you think?\nPicture of cit\u00e9\u00a0housing:\n\n","comment_id":"24738","post_id":"6762","user_id":"8889","parent_comment_id":"0","creation_date":"Wednesday, September 28, 2016 - 12:23","group_id":"0"}},{"node":{"title":"Getting in touch","content":"\nHow can we best get in touch ?\u00a0 I am enthusiastic to see these topics adressed here.\u00a0 These are topics I have been interested in over the last years, and would be glad to collaborate. I posted on the edgeryders huis vdh post some time back.\u00a0 I am based in Brussels. Lets get in touch ! Feel free to email me : dante (dot) monson (at) gmail (dot) com\nOr add me on fb : https:\/\/www.facebook.com\/dantegabryell\nWould be glad to meet in person and further talks from there on ...\n","comment_id":"24736","post_id":"6762","user_id":"366","parent_comment_id":"0","creation_date":"Wednesday, September 28, 2016 - 12:00","group_id":"0"}},{"node":{"title":"Thank you ","content":"\nThanks to everyone who made it happen and took all the notes to write this report.\u00a0It was an inspirational day and it's nice to read everything again!\nI can't see the Frameadate link in the text @Yannick. I'd love to be there to meet up again.\n","comment_id":"24737","post_id":"6821","user_id":"8889","parent_comment_id":"0","creation_date":"Wednesday, September 28, 2016 - 12:00","group_id":"0"}},{"node":{"title":"Thanks to all of you for the fruitful comments","content":"\nI apologise for not replying immediately to your comments. You are all giving a double feedback: a) it's an emergent issue the re-working of professions given the BIG changes in the fields of knowledge and sharing at large: b) your comments are of inspiration in developing a wider and\/but keen strategy.\nYes, there are some first outcomes:\na) the open infrastructure was presented at EMEMITALIA,\u00a0 the national congress on e-Learning that in Modena on september 6th\n\n\n\n\nb) next academic year will probably include 7 Master instead of 5 in a open infrastructure and tutors will be trained by a \"open\" approach;\nc) least but not last, three trainees (all nurses) are collaborating online to create emojis on healthcare, diagnosis and surgery issues. More to come... Seen your interest it might be useful to share some thoughts and network a bit on such perspective together in a videoconference perhaps..\n\n\u00a0\n\n\n\u00a0\n\n","comment_id":"24735","post_id":"6677","user_id":"8779","parent_comment_id":"0","creation_date":"Wednesday, September 28, 2016 - 11:20","group_id":"0"}},{"node":{"title":"Thank you @breathinggames !","content":"\nThank you @breathinggames ! It was great and inspiring meeting you at OpenSym, and looking forward to having you at IWEEE, GNU Health Con 2016 this November !\n","comment_id":"24730","post_id":"6765","user_id":"8972","parent_comment_id":"24578","creation_date":"Wednesday, September 28, 2016 - 00:06","group_id":"0"}},{"node":{"title":"Thank you, @Noemi !","content":"\nThank you, @Noemi !\nSouth is showing North the benefits of Free Software in Healthcare .\u00a0 No matter the hemisphere, we have to keep re-inforcing the concepts of Community, Freedom, Independence and Dignity. Many people still have the misconception - and find attractive - about \"gratis\" and not about \"libre\".\u00a0 Whenever we get a request on GNU Health, I spend quite a bit of time making sure that they get the philosophy behind the project. So, the transition is happening, but there is quite a bit of work ahead in the \"developed\" world, where Health is in the hand of private corporations, far from being public and universal.\n","comment_id":"24729","post_id":"6765","user_id":"8972","parent_comment_id":"24502","creation_date":"Wednesday, September 28, 2016 - 00:02","group_id":"0"}},{"node":{"title":"Separating assets from activities ","content":"\nWe have a particular problem in the UK, which is rising asset prices and particularly land and building prices. This is partly because we are a small crowded island and could do with more houses but it is also because we have an excess of money, and it tends to accumulate in the hands of a minority.\nIn care, the result is that individuals and even the state find it increasingly hard to acquire care homes and they attract private equity and hedge funds who treat staff as human \"resources\" and patients as \"consumers\" of health care services, squeezing the system to extract wealth.\nThis is, arguably, an extreme way of presenting the situation (after all, even hedge funds have to employ managers, many of whom are very professional and caring). However the fact is that having \"owners\" who have different drivers and values from the care-givers causes a tension that too often results in quality of care taking second place to \"delivery of health services\", which is quite a different thing.\nA useful parallel is the struggle many communities have to create affordable housing. An interesting and succesful innovation has been the community land trust, where land is acquired by or on behalf of the community and held in trust over the long term. They make the land available for affordable housing. Separating out the ownership of the land from the occupation of the land allows people who couldn't otherwise afford to occupy the land to come in and use it, subject to the conditions set down by the trust. We imagine a similar type of structure.\nTo put it another way, using financial language, owning land has a different time horizon and a different risk profile\u00a0 from owning a business. A care home that separates the two can attract different sorts of capital for the two different needs, and thus more closely match the interests of the investors with the interests of the stakeholders. That's the theory anyhow. \u00a0\n","comment_id":"24728","post_id":"6795","user_id":"446","parent_comment_id":"0","creation_date":"Tuesday, September 27, 2016 - 22:52","group_id":"0"}},{"node":{"title":"Inspiring","content":"\nReally encouraging to read this, Frederico. I am involved in an emerging group (we call it Caring for Life) looking to acquire care homes in the UK and start to liberate the staff and transform the way care is given. Like you, we are inspired by an open paradigm of care giving, as well as stories of self-managing organisations such as Buurtzorg. It is early days yet but when we have got a bit further, it would be good to hear more about your work and\u00a0 approach. \u00a0\n","comment_id":"24727","post_id":"6677","user_id":"446","parent_comment_id":"0","creation_date":"Tuesday, September 27, 2016 - 22:34","group_id":"0"}},{"node":{"title":"recover the lost space of \"participation\" and \"knowlege\"","content":"\nHallo Vassili,\nover decades we lost our acces to knowlege, public decision making (if there was ever such a thing?) and there is much need to create a base for organizational intelligence and social decision making. There are some tools available like wikipedia and e-govenance, gut to difficult to manage for the broad society and often higly manipulated by \"editors\". To find a way for decisionmaking, maintaining bottom up decision making by meta-rules that can be adjusted in an iterative democratic manner and making wisdom available not driven by profit intersts.\nI wish you good luck, because your issues have a high priority for societal development and as well for a socio-economic development.\nBert\n","comment_id":"24726","post_id":"6699","user_id":"8982","parent_comment_id":"0","creation_date":"Tuesday, September 27, 2016 - 20:54","group_id":"0"}},{"node":{"title":"You are on the right pass.","content":"\nIt is very important for social, psycological health to change the environment we are living in. Current living environments are a cause for all kinds of problems. So we want to encourage you to design new community and cooprative spaces for living and working.\nBert\n","comment_id":"24725","post_id":"6762","user_id":"8982","parent_comment_id":"0","creation_date":"Tuesday, September 27, 2016 - 19:42","group_id":"0"}},{"node":{"title":"Integral Care","content":"\nHallo Peter!\nThis looks very much like a care model relatet to integral aspects as in \"Integral Theory\". For insiders there ist not much to mention... you are on the right pass, following the right train of thougt.\nWe do have a simolar model in Mind but not only focussing on health, rather integrating health, learning, knowlege and cohabitation into a larger scheme.\nSo we want to encourage you to not only reserach this and create a virtual environment but work with real communities, who get supported by your ideas.\nBert\n","comment_id":"24724","post_id":"6352","user_id":"8982","parent_comment_id":"0","creation_date":"Tuesday, September 27, 2016 - 19:34","group_id":"0"}},{"node":{"title":"So i've been thinking a little about this`","content":"\nJust a few thoughts on suboptimality to hopefully\u00a0drive the discussion around this topic.\nIt is\u00a0the case from Alberto's comment\u00a0that \"fast, messy, large scale response\u00a0has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans\"\nIt seems that this is true in\u00a0cases where: a) a contingency plan already exists (e.g. Earthquake in Nepal, Disaster Relief in Sub-Saharan Africa) The above examples are plans for\u00a0disasters that occur frequently and regularly in places that share a geographic similarity or border.\u00a0It would seem logical to expect that, for example, a disaster relief plan for helping people in Nepal would also be of use if a similar problem occurred in Kashmir, or Bhutan. Since similar types of disaster are likely to occur in those place it makes sense to defer to NGOs on the ground in those areas.\nBut,\u00a0in order for us to 'leave it to the professional' there have to be NGO's willing, and able to step into that role in the space.\nWhat has happened in\u00a0Greece and Calais is\u00a0we have seen NGOs step up initially, but then step back from the problem.\u00a0Often because they cannot work with the changing political situation. I am thinking here of\u00a0MSF pulling out of\u00a0Lesvos after\u00a0the EU-Turkey repatriation deal occurred. (http:\/\/www.msf.org.uk\/article\/why-is-msf-closing-its-moria-project-on-lesvos)\nThe French government's\u00a0reluctance to acknowledge the legitimacy of the Calais camp\u00a0has created\u00a0a\u00a0vacuum.\u00a0So,\u00a0NGOs have struggled to work in that area. Because they cannot work\u00a0under license, they cannot reduce\u00a0the suffering there, except on a micro\u00a0scale.\nPerhaps the idea of sub-optimality in the system comes back to a\u00a0wider\u00a0idea. One that is floating around in other areas of the site, that of 'unlicensed behavior'. Once\u00a0an organisation or NGO becomes 'legitimate',\u00a0it tends to deal\u00a0with Governments. It starts to operate at a higher level politically. This brings with it more constraints on the way it can act (at least overtly).\u00a0It becomes more constrained to\u00a0do\u00a0things 'the correct\u00a0way' and less able to focus\u00a0on doing what is required.\nWhen there isn't a precident\u00a0for dealing with a disaster on the scale or in that location two options remain. Either improvise or adapt. Both options work with sub-optimality from different directions.\u00a0\nThe NGO is most likely to adapt. They will find solutions used in other areas, or to address different problems, and adapt them to the new situation. These solutions are 'tried and tested' and so they can point to evidence that shows where they have worked in the past. The NGO avoids looking bad\u00a0if this approach fails, because they can show ways it has worked before. Their cultural and political capital stays strong and they can work on a new response in the long term. I expect that the lessons learned by MSF et al during this decade's\u00a0refugee crisis in Europe will lead to contingency plans that will be used around the globe in the future. They struggle to deal with the problem in real time though.\nAt the other end the improviser continually adapts what they are doing to try new solutions. They are willing to try anything. They are willing to\u00a0fail\u00a0because they have no social or political capital to diminish, except with the people they work with directly.\u00a0This means they do not provide a consistent service, but they can evolve new solutions quickly through ongoing prototypes. They risk creating failures, but know that they will move on to another possibility the next day. This behaviour can be seen in the citizen organised projects in Calais and Greece.\nWhat is required is a way of feeding the experiences and innovation prototyped by the improvised,\u00a0citizen-led organisation\u00a0into the institutional learning of\u00a0NGOs\n","comment_id":"24723","post_id":"6729","user_id":"6559","parent_comment_id":"24602","creation_date":"Tuesday, September 27, 2016 - 17:39","group_id":"0"}},{"node":{"title":"Isn't it an entry point for that?","content":"\nIts just not the entry point, since this does not use a linear structure. Or am I misreading your intentions?\n","comment_id":"24705","post_id":"6665","user_id":"6534","parent_comment_id":"24700","creation_date":"Monday, September 26, 2016 - 11:58","group_id":"5954"}},{"node":{"title":"Isn't it an entry point for that?","content":"\nIts just not the entry point, since this does not use a linear structure. Or am I misreading your intentions?\n","comment_id":"24705","post_id":"6665","user_id":"6534","parent_comment_id":"24700","creation_date":"Monday, September 26, 2016 - 11:58","group_id":"5954"}},{"node":{"title":"I thought about mobile access a little...","content":"\nand you will generally have the problem of screen size and worse input via keyboard. On the other hand you usually have a camera on the mobile device nowadays. So the direction I would think in mobile access is the following:\n- image based comments (you take a picture of a sketch + a few words and upload that instead of text), this also allows participation of e.g. illiterate people and complements the predominantly text form data.\n- try to allow for a very simple yes\/no answer function.\n- another common use case will be 2-3 lines of context explanation and a link (lots of data\/info possible with little input)\nI would love to see hashtags integrated (https:\/\/www.drupal.org\/project\/hashtags) into the #platform at some point as that would allow to restructures conversations. As far as I understand we can use them already - they just don't work yet.\n","comment_id":"24704","post_id":"6665","user_id":"6534","parent_comment_id":"24681","creation_date":"Monday, September 26, 2016 - 11:55","group_id":"5954"}},{"node":{"title":"I thought about mobile access a little...","content":"\nand you will generally have the problem of screen size and worse input via keyboard. On the other hand you usually have a camera on the mobile device nowadays. So the direction I would think in mobile access is the following:\n- image based comments (you take a picture of a sketch + a few words and upload that instead of text), this also allows participation of e.g. illiterate people and complements the predominantly text form data.\n- try to allow for a very simple yes\/no answer function.\n- another common use case will be 2-3 lines of context explanation and a link (lots of data\/info possible with little input)\nI would love to see hashtags integrated (https:\/\/www.drupal.org\/project\/hashtags) into the #platform at some point as that would allow to restructures conversations. As far as I understand we can use them already - they just don't work yet.\n","comment_id":"24704","post_id":"6665","user_id":"6534","parent_comment_id":"24681","creation_date":"Monday, September 26, 2016 - 11:55","group_id":"5954"}},{"node":{"title":"Offtrack","content":"\nI hoped this could be an entry point\u00a0gathering\u00a0information relevant for\u00a0people starting\u00a0an open care initiative. \u00a0Sigh\nI give up\n","comment_id":"24700","post_id":"6665","user_id":"8837","parent_comment_id":"24691","creation_date":"Sunday, September 25, 2016 - 12:31","group_id":"5954"}},{"node":{"title":"Offtrack","content":"\nI hoped this could be an entry point\u00a0gathering\u00a0information relevant for\u00a0people starting\u00a0an open care initiative. \u00a0Sigh\nI give up\n","comment_id":"24700","post_id":"6665","user_id":"8837","parent_comment_id":"24691","creation_date":"Sunday, September 25, 2016 - 12:31","group_id":"5954"}},{"node":{"title":"@Noemi is true! Very busy","content":"\n@Noemi I mention @To-Steki in my story but it was before it's participation so I must correct the name and tag it. About 6 months the people from Steki made the delivery of all of those backpacks (that I was preparing) to Eidomeni. And we have had a very good cooperation. By the way, in Thessaloniki there are many active and solidarity groups. In their own way but active and helpful! This list is in greek but maybe you can have an idea.It's a short mapping of Thessaloniki's Municipality area\u00a0 http:\/\/www.thessaloniki.gr\/userfiles\/file\/Dioikisi(NeosOEY)\/AytTmEthelNeolaias\/LISTA1842016.pdf\n","comment_id":"24698","post_id":"6775","user_id":"8957","parent_comment_id":"24690","creation_date":"Sunday, September 25, 2016 - 02:17","group_id":"0"}},{"node":{"title":"I have a blog on my website.","content":"\nI have a blog on my website. What is easiest to do for you to spread the news? What do you need from me? Bloglinks? Newsletter subscription? I blog ca. once a week, newsletter is more like once a month. And on twitter we're already connected :))\n","comment_id":"24696","post_id":"6729","user_id":"8959","parent_comment_id":"24695","creation_date":"Saturday, September 24, 2016 - 19:52","group_id":"0"}},{"node":{"title":"Fantastic!","content":"\nWe stand ready to diffuse\u00a0your posts in the Edgeryders network, @ybe \u2013 and we would be happy to host them, if\u00a0you do not have a blog of your own.\n","comment_id":"24695","post_id":"6729","user_id":"34","parent_comment_id":"24687","creation_date":"Saturday, September 24, 2016 - 19:47","group_id":"0"}},{"node":{"title":"About social clinic","content":"\nYes, in fact there is a social clinic in Thessaloniki. You can find more info here\u00a0http:\/\/www.kiathess.gr\/en\/. I shall mention that is a different group from us; although we work together very often.\u00a0\n","comment_id":"24694","post_id":"6775","user_id":"8984","parent_comment_id":"24690","creation_date":"Saturday, September 24, 2016 - 18:09","group_id":"0"}},{"node":{"title":"Thanks","content":"\nThanks for your nice words!\nWe just have a typical legal existence, as a \"Union\", in order to be able to sign rent contracts, public services bills etc. But in fact it has nothing to do with our real function and work.\u00a0\nWe will add a \"donate\" button in a renewed version of our site that we are building now; as I said, till now, we had no need for such.\u00a0\n","comment_id":"24693","post_id":"6775","user_id":"8984","parent_comment_id":"24685","creation_date":"Saturday, September 24, 2016 - 18:06","group_id":"0"}},{"node":{"title":"i will think about your suggestion","content":"\nUntil i know what connectivity i will have in Ethiopia i can't commit to anything this year.\u00a0\nBut your hinted suggestion is noted and i'll have a serious think about it.\n","comment_id":"24692","post_id":"6665","user_id":"6559","parent_comment_id":"24654","creation_date":"Saturday, September 24, 2016 - 17:53","group_id":"5954"}},{"node":{"title":"i will think about your suggestion","content":"\nUntil i know what connectivity i will have in Ethiopia i can't commit to anything this year.\u00a0\nBut your hinted suggestion is noted and i'll have a serious think about it.\n","comment_id":"24692","post_id":"6665","user_id":"6559","parent_comment_id":"24654","creation_date":"Saturday, September 24, 2016 - 17:53","group_id":"5954"}},{"node":{"title":"i concurr","content":"\nMore power to the arm of anyone who can and will make improvements.\nI would also benefit from the tool allowing me to jump back into a thread at the point i left it.\nI'm a strong beliver in John's 'omnivorous' approach to the website. I try to read all of it (even the parts i don't comprehend)\n","comment_id":"24691","post_id":"6665","user_id":"6559","parent_comment_id":"24681","creation_date":"Saturday, September 24, 2016 - 17:51","group_id":"5954"}},{"node":{"title":"i concurr","content":"\nMore power to the arm of anyone who can and will make improvements.\nI would also benefit from the tool allowing me to jump back into a thread at the point i left it.\nI'm a strong beliver in John's 'omnivorous' approach to the website. I try to read all of it (even the parts i don't comprehend)\n","comment_id":"24691","post_id":"6665","user_id":"6559","parent_comment_id":"24681","creation_date":"Saturday, September 24, 2016 - 17:51","group_id":"5954"}},{"node":{"title":"Is there a social solidarity clinic in Thessaloniki?","content":"\nWelcome on board, @To-Steki, I'm curious if the clinic\u00a0is another initiative or just a metaphor you use? The many informal or established\u00a0groups you mention makes it seem like Thessaloniki is\u00a0very busy place\u00a0(@Aravella_Salonikidou's story confirms this!), it's just that I'm not sure if this is a real physical place or not..\u00a0\nThanks!\n","comment_id":"24690","post_id":"6775","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, September 24, 2016 - 17:22","group_id":"0"}},{"node":{"title":"I'll keep you posted !","content":"\nI'll keep you posted :-) . I may be going to Calais as well - via Alex Levene, keep you posted on that too.\n\u00a0\n","comment_id":"24687","post_id":"6729","user_id":"8959","parent_comment_id":"24684","creation_date":"Saturday, September 24, 2016 - 14:11","group_id":"0"}},{"node":{"title":"Great work..","content":"\nSuper-interesting, @To-Steki , thanks for sharing.\u00a0\nCan you say more about the legal and organizational structure of the Center? You write that it is \"completely self-organised place, depending exclusively on volunteers\u2019 work\". But there must be a legal entity behind it, because, as you write \"When the Public Electricity Company cut the power in the hostel due to high debt, we reconnected the supply to our name\". Who do you mean by \"we\" in this sentence? Is there a registered\u00a0Migrants Social Center NGO?\nI am asking because we found some highly effective groups in Greece who have no legal existence at all: they are just spontaneous aggregations of citizens. I guess your local social solidarity clinic is one of them, certainly there is one in Helliniko, in the Athens area, which we visited last year.\u00a0\nGood luck with your efforts! And just one more thing: I could not find a \"Donate\" link on your website (I can't read Greek, but you have Google Translate integration and a English home page).\u00a0\n","comment_id":"24685","post_id":"6775","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, September 24, 2016 - 11:34","group_id":"0"}},{"node":{"title":"Make sure you guys keep us in the loop!","content":"\nWe all stand to learn much from @ybe 's visit to @Aravella Salonikidou . If you could find the time to blog about it, I (and, I think, many others)\u00a0would be super-interested in reading and commenting.\u00a0\n","comment_id":"24684","post_id":"6729","user_id":"34","parent_comment_id":"24605","creation_date":"Saturday, September 24, 2016 - 11:16","group_id":"0"}},{"node":{"title":"Sure I would","content":"\nGiven the scarce resources available to create and improve this site, I think it works pretty well, though it definitely requires you to develop some new habits that are peculiar to this site, as a workaround\u00a0to some of its inefficiencies. \u00a0This applies to the mobile and the desktop interfaces. \u00a0I don't use my phone for it, but a lot of people do and the challenges of creating great and sophisticated interfaces on very small screen real estate \u00a0are substantial. \u00a0As to the \"obsolete\" comments, there is no reason to get rid of any of the site's history and a lot of reason to keep it. \u00a0But to make it so this site is very smart about remembering where you are in any given conversation and taking you directly to it, that is something a smart and dedicated Drupal programmer could create and implement. \u00a0Absent the money to insure its creation, we offer encouragement to anyone who wants to take it on.\n","comment_id":"24681","post_id":"6665","user_id":"8169","parent_comment_id":"24654","creation_date":"Saturday, September 24, 2016 - 01:59","group_id":"5954"}},{"node":{"title":"Sure I would","content":"\nGiven the scarce resources available to create and improve this site, I think it works pretty well, though it definitely requires you to develop some new habits that are peculiar to this site, as a workaround\u00a0to some of its inefficiencies. \u00a0This applies to the mobile and the desktop interfaces. \u00a0I don't use my phone for it, but a lot of people do and the challenges of creating great and sophisticated interfaces on very small screen real estate \u00a0are substantial. \u00a0As to the \"obsolete\" comments, there is no reason to get rid of any of the site's history and a lot of reason to keep it. \u00a0But to make it so this site is very smart about remembering where you are in any given conversation and taking you directly to it, that is something a smart and dedicated Drupal programmer could create and implement. \u00a0Absent the money to insure its creation, we offer encouragement to anyone who wants to take it on.\n","comment_id":"24681","post_id":"6665","user_id":"8169","parent_comment_id":"24654","creation_date":"Saturday, September 24, 2016 - 01:59","group_id":"5954"}},{"node":{"title":"Perfect!","content":"\n@ybe hope to see you soon!\n","comment_id":"24680","post_id":"6729","user_id":"8957","parent_comment_id":"24605","creation_date":"Friday, September 23, 2016 - 21:57","group_id":"0"}},{"node":{"title":"The Plenty Ambulance Service","content":"\nIn 1977 the South Bronx in New York had the worst healthcare in the country with one doctor per 100,000 people. \u00a0It was a time of \"white flight\" with scores of lareg apartment buildings abandoned by the tenants and then often bured by the owners (or someone) to collect insurance money. \u00a0It was the closest the USA has come to an urban environment that resembled many cities in Europe after WWII.\nAt the time I was living at The Farm down south in Tennessee, then the largest colledctive in the country. \u00a0It was famous for a lot of reasons, not the least of which was a concentration of hippies and dropouts who looked like typical countercultural stereotypes\u00a0but were in fact a concentration of highly educated and motivated people. \u00a0We used to sometimes say, \"don't take over the government. \u00a0Take over the government's function.\"\nIn that spirit, we created a nonprofit organization, Plenty, to do good work in the world. (Plenty still exists and thrives today: plenty.org). \u00a0Because we had to provide emergency health care to ourselves (the Farm had more than 1000 people at the time) and because some of those educated people wanted to apply themselves toward meaningful work that was also interesting, we had an unusually large group of EMTs, paramedics, nurses and other health care workers.\nSeeing how bad things were up in the south Bronx, we decided to go up there and see for ourselves if we could lend a hand.\nFast forward to early 1978. \u00a0A group of us located a suitable building and squatted in it, fixing it into a livable place. I was part of that early group.(That included converting the coal-buring furnace to a giant woodstove that we fueled by finding leftover wood products in nearby abandoned factories. \u00a0I went on may of those firewood runs. \u00a0Unforgettable!)\u00a0My daughter was born in that building, home delivered by one of our Farm midwives.\nLater that year, Plenty began a free ambulance service to the nearby residents. Soon enough some grant money was procured, equipment bought and\u00a0the ambulance service kicked into high gear, saving many lives. \u00a0The service lasted for six years, until crack and automatic weapons made the place much more dangerous than it already was. \u00a0But the good news was that the service had by then embarrassed the city so much by doing what the government was not doing, that the city improved its service to that community.\nRelevant to this topic: nobody asked for permission to do this. \u00a0No permits were applied for or obtained until much later when a lot of publicity was generated, and\u00a0the city couldn't exactly turn it down.\nI personally was a small player in this particular saga, and there is much more to the story - it was an incredible experience. \u00a0But I remain in awe today at the vision, the guts and the perseverance of the main people driving the project. \u00a0 It was the spirit of OpenCare at its finest.\n","comment_id":"24677","post_id":"6484","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 17:37","group_id":"0"}},{"node":{"title":"I see..","content":"\nCan't disagree with what you write @Village-Psy and the solution found in Calais seems to be training for self care and making your mind catch up with the program somehow. Because I'm sure anyone rational\u00a0can agree self care is important, but managing emotions and urges is something for another side of your brain..\n","comment_id":"24674","post_id":"6729","user_id":"32","parent_comment_id":"24658","creation_date":"Friday, September 23, 2016 - 16:08","group_id":"0"}},{"node":{"title":"Separate assets from activities","content":"\nThis sounds very sensible. I am curious about the separation of assets from care activities. Could you say more about why you think that's necessary?\n","comment_id":"24671","post_id":"6795","user_id":"34","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 13:22","group_id":"0"}},{"node":{"title":"What is the most important difference","content":"\nWelcome, @Big Bang Schools . This sounds really promising. I tried to look up your links to find out more about your initiative.\u00a0Unfortunately I can't read Greek, so I don't know more now than I did before.\u00a0\nIf you were to point out the main difference between Bog Bang Schools and ordinary schools, what would it be?\u00a0\n","comment_id":"24670","post_id":"6798","user_id":"34","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 13:20","group_id":"0"}},{"node":{"title":"Reminds me of someone :-)","content":"\n@Jenny Gkiougki , have you already met @Matthias and the Epelia\u00a0crowd? I think you have much in common, and may even find ways to work together. They want to be an online market place for products like the one you are already interested in. Let us know if you want an introduction.\u00a0\n","comment_id":"24669","post_id":"6776","user_id":"34","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 13:06","group_id":"0"}},{"node":{"title":"Unlikely allies","content":"\nSo, what we have here is:\n\nA peer-to-peer support group of mental health patients and caregivers.\nWhich formed with the idea to give out recommendations for improving HSE (state-provided) services.\nBut which ended up having to take on the role of innovators and start prototyping stuff, as institutional response was slow.\nAnd reconfigured itself in the context of the process through which Galway has re-invented itself to bid (successfully) for European Capital of Culture 2020.\nWith its main ally so far being not a hospital or a clinic, but an Arts Museum.\u00a0\n\nIt is paradoxical and completely logical at once! I guess, in its own way, this is fairly typical of the idiosyncratic paths taken by communities of care. You work with the tools you find lying around, and they might be highly specific of your place and time.\u00a0\nECOC processes have one thing going for them: they do encourage everyone in the bidding city to think as a local community, like a piece of a local system. Maybe it made it more natural for a group interested in mental health issues and an arts museum to form an alliance.\u00a0\n","comment_id":"24668","post_id":"6794","user_id":"34","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 13:01","group_id":"0"}},{"node":{"title":"Hi there,","content":"\nHi there,\n\u00a0\nI will try to answer you briefly and to the point as I just got back from hospital and I need my rest.\u00a0\nFor the situation with CSAs in Greece please read my report here\u00a0http:\/\/urgenci.net\/wp-content\/uploads\/2016\/05\/Overview-of-Community-Supported-Agriculture-in-Europe-F.pdf\n\u00a0\nAs for AFDS in Thessaloniki, as we said our project is still underway and nowhere near its end, but I can say that there is a vast array of different projects ranging from 100% legitimised cooperatives to completely informal groups tending a small garden feeding the poor and refugees. And new initiatives are springing up all the time. It is a truly exciting endeavour mapping them all.\u00a0\n\u00a0\nI hope this covers your questions :)\n","comment_id":"24664","post_id":"6776","user_id":"8985","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 12:06","group_id":"0"}},{"node":{"title":"burn out","content":"\n@ Noemi\ni agree that self care has become a luxury for volunteers (no time, too many tasks to tackle , unprecedented situations)\u00a0especially under\u00a0circumstances such as the one Alex @Levene desribes in Calais, but let us not forget of the burnt out effect. And when we reach that stage we are of \u00a0no help to anyone....\u00a0\nSelf care should not be a luxury.\u00a0 As volunteers, we are \u00a0human beings who need the basics to get by, we\u00a0need water,\u00a0 food, shelter\u00a0, sleep\u00a0, safety and human contact but \u00a0in order to carry on we also need to know where to draw our limits. We are not superhuman, we cannot do everything, we cannot do everything by ourselves.\nIn\u00a0Lesvos and many other of the Greek islands flooding with refugees\u00a0this past year, numerous young idealistic volunteers arrived from all over Europe\u00a0wanting to make a difference in the lives of others. Some of these individuals under the circumstances, after a few weeks, not being able to bear the situation, which was physically but above all mentally exhausting ended up, being burnt out and rather than provide help \u00a0required themselves psychological \u00a0assistance. This was ultimately\u00a0very distracting for the rescue teams and those providing PFA who needed to focus on the refugees instead.\u00a0\u00a0 I guess what i am saying is selfcare in whatever form it takes,\u00a0\u00a0is a prerequisite in order to be able to carry on the difficult task of volunteering in such harsh conditions otherwise you may be burnt out .\n\u00a0\n","comment_id":"24658","post_id":"6729","user_id":"8947","parent_comment_id":"24655","creation_date":"Friday, September 23, 2016 - 09:47","group_id":"0"}},{"node":{"title":"A network of the people ","content":"\nA network of the people who participated in village psy, encounters in psychotherapy\u00a0,has been\u00a0established after the first encounter this summer, who continue\u00a0 to communicate with each other through social media, so\u00a0contact\u00a0is ensured,\u00a0along with\u00a0an\u00a0\u00a0ongoing exchange of ideas.\nSome, we hear,\u00a0who live in the same cities,\u00a0\u00a0 have had \u00a0the chance to meet up since August. However since, participants\u00a0are spread all over Greece and some live abroad,\u00a0\u00a0getting everyone together \u00a0before the next venture is difficult. There is an idea, based on demand,of a smaller scale\u00a0 experiental workshop encounter in 'the village'\u00a0, a sort of follow up, in a few months time for those who can attend.\nThe idea of community\u00a0 and belonging\u00a0 can somehow be maintened through social networking for some\u00a0time\u00a0, but ultimately\u00a0the natural environment and the physical encounter are crucial for a longterm positive outcome , as they are \u00a0an essential part of the therapeutic process\u00a0.\n","comment_id":"24657","post_id":"6705","user_id":"8947","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 09:05","group_id":"0"}},{"node":{"title":"Who then takes care of the volunteers?","content":"\n@Village-Psy maybe you can help us understand why self care is so expensive for one to offer it to herself. Have you read about the 24\/7 caregivers who simply can't switch off? If you have something to offer to that discussion and would be willing to head over there\u00a0it would be very well received.\n","comment_id":"24655","post_id":"6729","user_id":"32","parent_comment_id":"24429","creation_date":"Friday, September 23, 2016 - 02:19","group_id":"0"}},{"node":{"title":"What are obsolete comments?","content":"\nI may have missed the point.. I get they are older comments, but why obsolete?\n@Alberto: I assigned the wiki\u00a0to both the Research group and Op3n Community group, would that work? Or do you need it to be specifically a Challenge Response content type?\u00a0I thought we're also coding *parts* of the content in Research - i.e. case studies\u00a0we shared frugally, or conceptualizations of opencare etc..\n@Alex Levene:\u00a0great comment\u00a0above,\u00a0sharing your personal\u00a0experience while really relating to other's.\u00a0Spoken like a true peer and\u00a0community manager\u00a0(hint hint :-) \u00a0@johncoate would\u00a0approve I think, wouldn't you John?\u00a0\n","comment_id":"24654","post_id":"6665","user_id":"32","parent_comment_id":"24629","creation_date":"Friday, September 23, 2016 - 02:11","group_id":"5954"}},{"node":{"title":"What are obsolete comments?","content":"\nI may have missed the point.. I get they are older comments, but why obsolete?\n@Alberto: I assigned the wiki\u00a0to both the Research group and Op3n Community group, would that work? Or do you need it to be specifically a Challenge Response content type?\u00a0I thought we're also coding *parts* of the content in Research - i.e. case studies\u00a0we shared frugally, or conceptualizations of opencare etc..\n@Alex Levene:\u00a0great comment\u00a0above,\u00a0sharing your personal\u00a0experience while really relating to other's.\u00a0Spoken like a true peer and\u00a0community manager\u00a0(hint hint :-) \u00a0@johncoate would\u00a0approve I think, wouldn't you John?\u00a0\n","comment_id":"24654","post_id":"6665","user_id":"32","parent_comment_id":"24629","creation_date":"Friday, September 23, 2016 - 02:11","group_id":"5954"}},{"node":{"title":"hi @Alex Levene\u00a0, nice to","content":"\nhi @Alex Levene\u00a0, nice to meet you, I dont understand if your long post is a rant defending defects but I think this motivations overrules personal opinions\nhttps:\/\/edgeryders.eu\/en\/edgeryders-dev\/task-6800\n\u00a0\n","comment_id":"24630","post_id":"6665","user_id":"8837","parent_comment_id":"24621","creation_date":"Friday, September 23, 2016 - 01:52","group_id":"5954"}},{"node":{"title":"hi @Alex Levene\u00a0, nice to","content":"\nhi @Alex Levene\u00a0, nice to meet you, I dont understand if your long post is a rant defending defects but I think this motivations overrules personal opinions\nhttps:\/\/edgeryders.eu\/en\/edgeryders-dev\/task-6800\n\u00a0\n","comment_id":"24630","post_id":"6665","user_id":"8837","parent_comment_id":"24621","creation_date":"Friday, September 23, 2016 - 01:52","group_id":"5954"}},{"node":{"title":"So useful to hear.","content":"\nWe're in time to make it better, and run with similar stuff in the future!\u00a0\n\u00a0\n","comment_id":"24651","post_id":"6743","user_id":"32","parent_comment_id":"24644","creation_date":"Friday, September 23, 2016 - 01:39","group_id":"5954"}},{"node":{"title":"So useful to hear.","content":"\nWe're in time to make it better, and run with similar stuff in the future!\u00a0\n\u00a0\n","comment_id":"24651","post_id":"6743","user_id":"32","parent_comment_id":"24644","creation_date":"Friday, September 23, 2016 - 01:39","group_id":"5954"}},{"node":{"title":"So useful to hear.","content":"\nWe're in time to make it better, and run with similar stuff in the future!\u00a0\n\u00a0\n","comment_id":"24651","post_id":"6743","user_id":"32","parent_comment_id":"24644","creation_date":"Friday, September 23, 2016 - 01:39","group_id":"5954"}},{"node":{"title":"I love your model","content":"\nHey @Frodizo\u00a0team, welcome to Edgeryders and many thanks to @Pavlos for inviting you.\nYou seem to place a lot of focus on partnering or complying with government regulations, why is that needed if you are providing services at home? is it only to gain the trust of the people needing the services?\nI think your 6 month cycle activities are brilliant for getting structured and stopping to evaluate. I've seen a similar initiative in COSAIN, an Irish initiative which is also community led and where authors are skillfully building a support base among formal care providers, communities in need and an unexpected large share of therapeutic art caregivers, which is very interesting - for the proof of concept they are using a museum's space once a week. I strongly encourage you to go in and say hello!\n","comment_id":"24650","post_id":"6797","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 23, 2016 - 01:02","group_id":"0"}},{"node":{"title":"to me...this is philosophy put into action","content":"\ni see the seeds of complexity langiage transformed in a real approach.\nthis is a music which i never heard before\u00a0\n\u00a0\nthis is a lot of academic gold transofmerd not into bla bla but in a real opportunity.\ni am not saying it is perfect, i am nto sayd it will be working ;-)\nbut it is the best attempt i know\u00a0\n","comment_id":"24644","post_id":"6743","user_id":"458","parent_comment_id":"0","creation_date":"Thursday, September 22, 2016 - 16:17","group_id":"5954"}},{"node":{"title":"to me...this is philosophy put into action","content":"\ni see the seeds of complexity langiage transformed in a real approach.\nthis is a music which i never heard before\u00a0\n\u00a0\nthis is a lot of academic gold transofmerd not into bla bla but in a real opportunity.\ni am not saying it is perfect, i am nto sayd it will be working ;-)\nbut it is the best attempt i know\u00a0\n","comment_id":"24644","post_id":"6743","user_id":"458","parent_comment_id":"0","creation_date":"Thursday, September 22, 2016 - 16:17","group_id":"5954"}},{"node":{"title":"to me...this is philosophy put into action","content":"\ni see the seeds of complexity langiage transformed in a real approach.\nthis is a music which i never heard before\u00a0\n\u00a0\nthis is a lot of academic gold transofmerd not into bla bla but in a real opportunity.\ni am not saying it is perfect, i am nto sayd it will be working ;-)\nbut it is the best attempt i know\u00a0\n","comment_id":"24644","post_id":"6743","user_id":"458","parent_comment_id":"0","creation_date":"Thursday, September 22, 2016 - 16:17","group_id":"5954"}},{"node":{"title":"Lasting effect","content":"\nHi @Village-Psy,\u00a0\nWhat followup do you provide\/offer to ensure longterm positive outcomes?\n\u00a0\n\u00a0\n","comment_id":"24641","post_id":"6705","user_id":"8944","parent_comment_id":"0","creation_date":"Thursday, September 22, 2016 - 12:52","group_id":"0"}},{"node":{"title":"Trauma healing for first responders","content":"\nHi\u00a0@ybe, Have you considered providing trauma healing for cops? They are the ones who inflict much of the trauma in my area and they could use a big dose of emotional\u00a0processing!\n","comment_id":"24640","post_id":"6746","user_id":"8944","parent_comment_id":"0","creation_date":"Thursday, September 22, 2016 - 12:49","group_id":"0"}},{"node":{"title":"Ok, wrong question maybe","content":"\nOk, @ybe , it might be the wrong question. People do what they do. The question is: is this impulse towards care reliable enough that we can factor it into project design? Are we looking at a sort of \"If we build it, they will come\" of community care initiatives?\n","comment_id":"24639","post_id":"6767","user_id":"34","parent_comment_id":"24567","creation_date":"Thursday, September 22, 2016 - 12:35","group_id":"0"}},{"node":{"title":"How is the mapping going?","content":"\nHi @Jenny Gkiougki and welcome!\u00a0It seems to me from reading you and @Pavlos that there are very active groups at the network level trying to promote new agendas for food production and consumption. And more so, for more cooperative frameworks like @ChristineSa\u00a0. What have you discovered in your mapping, which\u00a0are the initiatives running food alternative systems?\nAlso, how are existing\u00a0CSA schemes in Greece working? I'm guessing even at informal levels there are some, and I'm a fan of the model although I've seen in practice how hard it is to sustain itself in terms of long term trust and ability of consumers to deal with less good crops.\u00a0\u00a0\n\u00a0\n","comment_id":"24636","post_id":"6776","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, September 22, 2016 - 11:29","group_id":"0"}},{"node":{"title":"Care workers at risk of poverty","content":"\nThanks for sharing the links, from the ministry's communication I picked up on something new: \"The question of women's employment is thus closely linked to the question of the social organization of care work\" So the risk is that the more care work you do around the house, the more you risk being paid\u00a0less because of inability to take up fulltime work and provide for yourself at an old age..?\nOn the other side,\u00a0unpaid care\u00a0work it's somehting many of us do in our lives - out of love, pleasure, even a sense of\u00a0duty as Alex pointed out in his story of refugee\u00a0volunteering. For a lot of people care - and I've seen older generation women in my family, care is indeed something they \"can't switch off\" from because it is where they find meaning in their lives.\u00a0After retiring, they, and not their husbands were the ones who were able to take on paid care roles (eg caring for small children) as those skills remain valued at an old age. Indeed underpaid, and yet the only surplus income in the family.\u00a0\nDo other policies like paternal leave work in Germany? In Romania it's currently at only 10% of fathers taking it :-(\u00a0\n\u00a0\n","comment_id":"24633","post_id":"6781","user_id":"32","parent_comment_id":"24601","creation_date":"Thursday, September 22, 2016 - 09:48","group_id":"0"}},{"node":{"title":"Perceptions changing","content":"\n@OrangeHouse welcome to Edgeryders, we are honored!\nYour story is providing interesting answers to questions we were posing a few months with @Luisa @Natalia_Skoczylas and others - how to convince people in our close circles, let alone the broader community, to drop the fear of the unknown which is often at the very core of racist or xenophobic reactions. It seems you figured out a good way - by showing things. Then no arguments or fights\u00a0needed..\n","comment_id":"24632","post_id":"6754","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, September 22, 2016 - 09:18","group_id":"0"}},{"node":{"title":"I'll try to correct the link","content":"\nThanks for letting me know @Alex Levene. I have corrected the link could you please retry?\n(I think I was to quick saying nice things about google docs, I keeps giving error messages \u00a0tonight)\n","comment_id":"24629","post_id":"6665","user_id":"8837","parent_comment_id":"24619","creation_date":"Wednesday, September 21, 2016 - 22:03","group_id":"5954"}},{"node":{"title":"I'll try to correct the link","content":"\nThanks for letting me know @Alex Levene. I have corrected the link could you please retry?\n(I think I was to quick saying nice things about google docs, I keeps giving error messages \u00a0tonight)\n","comment_id":"24629","post_id":"6665","user_id":"8837","parent_comment_id":"24619","creation_date":"Wednesday, September 21, 2016 - 22:03","group_id":"5954"}},{"node":{"title":"Starting the guide","content":"\nPersonally I find this site\/wiki\u00a0is born messy and I propose turning to a google document solution\nhttps:\/\/drive.google.com\/open?id=125lKsi-Wm4Gq0AWkIEHD2SAOGaiiV9C8VykS1bf-Jzc\nPlease join in. I have already started inserting headlines and comments from @Noemi, @Woodbinehealth, @steelweaver\n\u00a0\n","comment_id":"24591","post_id":"6665","user_id":"8837","parent_comment_id":"0","creation_date":"Wednesday, September 21, 2016 - 22:00","group_id":"5954"}},{"node":{"title":"Starting the guide","content":"\nPersonally I find this site\/wiki\u00a0is born messy and I propose turning to a google document solution\nhttps:\/\/drive.google.com\/open?id=125lKsi-Wm4Gq0AWkIEHD2SAOGaiiV9C8VykS1bf-Jzc\nPlease join in. I have already started inserting headlines and comments from @Noemi, @Woodbinehealth, @steelweaver\n\u00a0\n","comment_id":"24591","post_id":"6665","user_id":"8837","parent_comment_id":"0","creation_date":"Wednesday, September 21, 2016 - 22:00","group_id":"5954"}},{"node":{"title":"also Hi","content":"\nHi Rune, we haven't engaged in any dicussion before, so i realised i should 'officially' say hello and welcome.\nIt's really great that you're keen to help develop and improve the way the ER site works for users. Definitely a positive place to be. My ignorance in all areas 'code' is a large stumbling block. My skills are more in the soft\/event arena.\n","comment_id":"24621","post_id":"6665","user_id":"6559","parent_comment_id":"24612","creation_date":"Wednesday, September 21, 2016 - 14:49","group_id":"5954"}},{"node":{"title":"also Hi","content":"\nHi Rune, we haven't engaged in any dicussion before, so i realised i should 'officially' say hello and welcome.\nIt's really great that you're keen to help develop and improve the way the ER site works for users. Definitely a positive place to be. My ignorance in all areas 'code' is a large stumbling block. My skills are more in the soft\/event arena.\n","comment_id":"24621","post_id":"6665","user_id":"6559","parent_comment_id":"24612","creation_date":"Wednesday, September 21, 2016 - 14:49","group_id":"5954"}},{"node":{"title":"Messiness is part of the charm","content":"\nHi Rune,\nI understand your frustration with the site, when i first came to Edgeryders i found that it was rather labyrinthine and not structured towards easy comprehension. The site has undergone a number of iterations to get to where it is now and i think that we have a site that is much smoother and more aesthetically pleasing than when i joined the community a year ago.\nI agree that the mobile access is a problem, and it seems there are people working in the background to solve that. My view is that when i log in on my mobile i just want to read a comment or post. I'm probably not going to sit and write a response on my phone because i prefer to think deeply about my responses and respond in depth. My view is that i don't need to site to act as a social media platform. I want depth of field, not speed here.\nI quite like that the 'obsolete comments' remain in the system. Every few weeks i spend a day digging through the old projects, conversations etc on the site. It helps me see how things have developed and where the issues have been. I gain a much greater understanding of the path, the battles and the 'big picture' when i get lost down the old blind alleys and dead ends.\u00a0I think if we moved to a position where we only showed the finished product and not the working out we are giving a false impression, plus i imagine it would have negative impacts on both the 'openness' and the ability to analyse and extract quality data from the platform. But i wouldn't know anything about that specifically as i'm not a computer network scientist. I'm a poet and creative producer.\nI too am a big fan of the Google Docs set up. We use it to set up some of the Culture Team documents, and i think Alberto has had some successes using it for the OpenandChange application. It seems to work best for input from between 4-5 active collaborators though. I do think that it does decrease the number of people who engage with the document and\u00a0there are some on ER that are disincentivised to use Google products. Where input is wanted\u00a0from as many people as possible i think the messy solution on the site is still best for collecting that information from everyone.\nThose are my initial thoughts on your points. The Google docs link doesn't connect to a file so i can't participate in the process much further right now.\n","comment_id":"24619","post_id":"6665","user_id":"6559","parent_comment_id":"24612","creation_date":"Wednesday, September 21, 2016 - 14:43","group_id":"5954"}},{"node":{"title":"Messiness is part of the charm","content":"\nHi Rune,\nI understand your frustration with the site, when i first came to Edgeryders i found that it was rather labyrinthine and not structured towards easy comprehension. The site has undergone a number of iterations to get to where it is now and i think that we have a site that is much smoother and more aesthetically pleasing than when i joined the community a year ago.\nI agree that the mobile access is a problem, and it seems there are people working in the background to solve that. My view is that when i log in on my mobile i just want to read a comment or post. I'm probably not going to sit and write a response on my phone because i prefer to think deeply about my responses and respond in depth. My view is that i don't need to site to act as a social media platform. I want depth of field, not speed here.\nI quite like that the 'obsolete comments' remain in the system. Every few weeks i spend a day digging through the old projects, conversations etc on the site. It helps me see how things have developed and where the issues have been. I gain a much greater understanding of the path, the battles and the 'big picture' when i get lost down the old blind alleys and dead ends.\u00a0I think if we moved to a position where we only showed the finished product and not the working out we are giving a false impression, plus i imagine it would have negative impacts on both the 'openness' and the ability to analyse and extract quality data from the platform. But i wouldn't know anything about that specifically as i'm not a computer network scientist. I'm a poet and creative producer.\nI too am a big fan of the Google Docs set up. We use it to set up some of the Culture Team documents, and i think Alberto has had some successes using it for the OpenandChange application. It seems to work best for input from between 4-5 active collaborators though. I do think that it does decrease the number of people who engage with the document and\u00a0there are some on ER that are disincentivised to use Google products. Where input is wanted\u00a0from as many people as possible i think the messy solution on the site is still best for collecting that information from everyone.\nThose are my initial thoughts on your points. The Google docs link doesn't connect to a file so i can't participate in the process much further right now.\n","comment_id":"24619","post_id":"6665","user_id":"6559","parent_comment_id":"24612","creation_date":"Wednesday, September 21, 2016 - 14:43","group_id":"5954"}},{"node":{"title":"Then action needs to be taken","content":"\n@Alberto, I understand the point perfectly. Sorry. The issue is that I have evaluated how much time (40-80 hours) I have spent in edgeryderspace, and as I see it the site needs rethinking.\n1. Its impossible to view and edit on mobile (and\u00a0\u00a0It has severe accessibility problems, but thats another issue)\n2. I really get lost in conversations because obsolete comments remains.\u00a0\n3. I've just started working with living documents and I have already esperiences of extreme effectiveness in collaborating online with google docs (hate to say they really got it right where M$ got it wrong)\nThe plan is to upload the content of the doc here if possible. Until then I went for a practical solution to get things done now.\nWhat do you think?\n\u00a0\n","comment_id":"24612","post_id":"6665","user_id":"8837","parent_comment_id":"24597","creation_date":"Wednesday, September 21, 2016 - 10:34","group_id":"5954"}},{"node":{"title":"Then action needs to be taken","content":"\n@Alberto, I understand the point perfectly. Sorry. The issue is that I have evaluated how much time (40-80 hours) I have spent in edgeryderspace, and as I see it the site needs rethinking.\n1. Its impossible to view and edit on mobile (and\u00a0\u00a0It has severe accessibility problems, but thats another issue)\n2. I really get lost in conversations because obsolete comments remains.\u00a0\n3. I've just started working with living documents and I have already esperiences of extreme effectiveness in collaborating online with google docs (hate to say they really got it right where M$ got it wrong)\nThe plan is to upload the content of the doc here if possible. Until then I went for a practical solution to get things done now.\nWhat do you think?\n\u00a0\n","comment_id":"24612","post_id":"6665","user_id":"8837","parent_comment_id":"24597","creation_date":"Wednesday, September 21, 2016 - 10:34","group_id":"5954"}},{"node":{"title":"Future direction","content":"\nIdea for discussion: OpenCare.CC could provide a \u2018hub\u2019 for triage of people seeking OpenCare solutions and who to contact\n@ybecasteleyn@skynet.be\u00a0@alberto.cottica@gmail.com\u00a0\n","comment_id":"24611","post_id":"6665","user_id":"8837","parent_comment_id":"0","creation_date":"Wednesday, September 21, 2016 - 10:27","group_id":"5954"}},{"node":{"title":"Future direction","content":"\nIdea for discussion: OpenCare.CC could provide a \u2018hub\u2019 for triage of people seeking OpenCare solutions and who to contact\n@ybecasteleyn@skynet.be\u00a0@alberto.cottica@gmail.com\u00a0\n","comment_id":"24611","post_id":"6665","user_id":"8837","parent_comment_id":"0","creation_date":"Wednesday, September 21, 2016 - 10:27","group_id":"5954"}},{"node":{"title":"Lovely bagmati response","content":"\n\u00a0Yes the Bagmati\u00a0does have its issues but it's cultural importance is intriguing. The residents of Kathmandu\u00a0have been cleaning up the banks of the river for the past 150 Saturdays\u00a0and they have not missed a single Saturday yet even during the earthquake which is \u00a0it is remarkable. Yes I think that the arts has a\u00a0way of bringing together a lot of different groups and using aesthetics is a way to introduce complicated issues \u00a0in a accessible manner.\u00a0\n","comment_id":"24607","post_id":"6783","user_id":"8991","parent_comment_id":"0","creation_date":"Wednesday, September 21, 2016 - 04:40","group_id":"0"}},{"node":{"title":"Lovely Bagmati","content":"\n@Natalia Skoczylas haha yes, Bagmati is unforgettable \u2026 I have a lively memory of this (stench on the) bridge above Bagmati on our usual cycle ride to Sanepa :D\nAnd @albertorey , about your initiative: the arts may indeed prove to be a key to get collective organizing going for river protection and cleanup. Example in question: I'm following a community in Mumbai doing regular cleanups on a local beach. They pulled some 3000 metric tons of plastic garbage from the ocean, but obviously the city always provides more. So back in July, a friend from Mumbai was looking for ways to catch the garbage while it's carried in the river and before it reaches the shore, and together we found this barrier boom technology, produced locally in India by a company from Bangalore. So the tech part is solved in principle (and the barrrier can even be installed in a way that lets boats pass.) But we are at a loss how to organize people to get this thing purchased (or DIY made) installed. After reading about your approach, it seems to me that an arts and documentary project could be the missing social catalyst in a case like this. Showing people the progress they have made already, and how a river barrier is the logical next step for a lasting solution. Well, or that people stop littering, but let's be realistic for the near term :)\n","comment_id":"24606","post_id":"6783","user_id":"36","parent_comment_id":"24575","creation_date":"Wednesday, September 21, 2016 - 00:10","group_id":"0"}},{"node":{"title":"december 2016 \/ January 2017","content":"\n@Aravella Salonikidou I plan to visit Greece in december 2016 \/ January 2017 - I can stay a month or so\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"24605","post_id":"6729","user_id":"8959","parent_comment_id":"24590","creation_date":"Tuesday, September 20, 2016 - 20:25","group_id":"0"}},{"node":{"title":"Interesting idea Patrick","content":"\n\"grief is a form of disability...\"\nI think this is a very interesting suggestion\u00a0Patrick, that may benefit from great insight.\nI also read a very interesting acticle about how it is often harnessed by communities to help deliver change as well:\nhttp:\/\/www.slate.com\/articles\/life\/cover_story\/2016\/09\/pulse_and_the_power_of_lgbtq_grief.html\nWell worth a read\n","comment_id":"24603","post_id":"6443","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 19:02","group_id":"0"}},{"node":{"title":"Will think and post here","content":"\nI think there's a lot to be said about suboptimality when it come to care and response. I will have a think and put some words together for you.\n","comment_id":"24602","post_id":"6729","user_id":"6559","parent_comment_id":"24506","creation_date":"Tuesday, September 20, 2016 - 18:57","group_id":"0"}},{"node":{"title":"Equal Care Day - First time was in 2016","content":"\nIt did already happen! For the first time in 2016, but only online and in german. Nevertheless we got great responses and media coverage, support by lots of people, who posted their positions on this subject and a supporting statement from the german Ministry for Family Affairs. So 'Equal Care Day, 29.2.' seems to be an established day in certain circles, but of course we'd like more people to know about it, to discuss it, to raise awareness to the lack of appreciation of care work - so now we're looking forward to 29.2.2020, and hope to find fellows who spread the idea to other countries and sponsors to organize a live event on this special day.\n","comment_id":"24601","post_id":"6781","user_id":"8989","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 18:46","group_id":"0"}},{"node":{"title":"Agree","content":"\nHi,\n\u00a0\nTotally agree with this. The situation in Calais has the added edge that most of the aid agencies operating there are UK based charities, but they are working in France. There is a need to try to work alongside local authorities (or be seen to) because we are 'outsiders\/foreigners' and 'interfering'\nKeeping the refugees in the community as a central\u00a0part of the planning and decision making is a core part of the management though.\u00a0\nMany of us wish there could be a better, more permanent way of dealing with this situation. But right now getting either the French or UK governments to actually accept that these people are not just going to disappear into the air, well, that's almost impossible.\n","comment_id":"24600","post_id":"6223","user_id":"6559","parent_comment_id":"24595","creation_date":"Tuesday, September 20, 2016 - 18:35","group_id":"0"}},{"node":{"title":"\"mutual support is amongst the most therapeutic of acts\"","content":"\nThis. Over and over again.\u00a0\nI'm an avid supporter of Cosain and look forward to returning to Galway soon!\u00a0","comment_id":"24599","post_id":"6794","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 18:26","group_id":"0"}},{"node":{"title":"Do you manage to cover the running costs?","content":"\n@BLOODe welcome on board, it's lovely to meet you!\nWhat you do is different than volunteering, you do entrepreneurship which I know - from working with Edgeryders -\u00a0takes all of one \u00a0because it involves coordination, management, comms all at once and by limited number of people. Do you manage to cover the costs of the logistics of\u00a0your work? What about paying yourselves for the hard\u00a0work?\u00a0\n","comment_id":"24598","post_id":"6793","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 18:23","group_id":"0"}},{"node":{"title":"Disappears from the ethnography","content":"\n@Noemi , transforming the node away from challenge response makes it disappear from the ethnography.\u00a0\nIn theory it can be brought back in by assigning it to the Op3nCare Community, but when I do that I lose comments. Ideas?\n","comment_id":"24597","post_id":"6665","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 18:17","group_id":"5954"}},{"node":{"title":"Disappears from the ethnography","content":"\n@Noemi , transforming the node away from challenge response makes it disappear from the ethnography.\u00a0\nIn theory it can be brought back in by assigning it to the Op3nCare Community, but when I do that I lose comments. Ideas?\n","comment_id":"24597","post_id":"6665","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 18:17","group_id":"5954"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"5954"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"5954"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"5954"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"5954"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"4260"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"4260"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"4260"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"4260"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"366"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"366"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"366"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"366"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"438"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"438"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"438"}},{"node":{"title":"Interesting","content":"\nI hope that you find a way to help us understand all these contradictory evolutions.\u00a0\n","comment_id":"24596","post_id":"6377","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:21","group_id":"438"}},{"node":{"title":"Solidarity or charity","content":"\nHi,\u00a0\nsimilar approach and initiatives have been taken in Greece, by many solidarity groups, which try to avoid any connection and dependence from state and formal NGOs, trying to distinct between solidarity and charity, A very\u00a0crucial factor on this issue is the participation of the refugees (or other groups supported).\u00a0\n","comment_id":"24595","post_id":"6223","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:17","group_id":"0"}},{"node":{"title":"EBM","content":"\nDear @steelweaver, I do appreciate your references, but\u00a0cochrane reviews\u00a0are better in supporting the statements. Personally I have proposed some studies but apparently 'scientific approach' is disturbing the 'chi'. However we surrender to a universal law 'effectiveness is the measure of truth' \u00a0and we have a moral obligation to strive for the most effective treatment (leave the measure of effectiveness open for now) regardless of our personal beliefs, hopes and dreams.\u00a0\nWhat I'm getting at here is that OpenCare should also consider establish a serious approach with double scope: avoiding infiltration of quackery and protect us from accusations of quackery.\u00a0\n\u00a0What I'm asking the community for is to contribute with ideas of how to implement EBM in our approach, as in your clinic?\nWhat I think we can offer each other within OpenCare is the solution to \"can't afford to hire a medical research team\", surely we have the skills in this comunity.\u00a0\nSo lets help each other. I've started a cook book over here\n\u00a0\n","comment_id":"24594","post_id":"6304","user_id":"8837","parent_comment_id":"24056","creation_date":"Tuesday, September 20, 2016 - 17:14","group_id":"0"}},{"node":{"title":"Cooking on movement","content":"\nHi,\u00a0\nin Greece, many solidarity groups the last years have been cooking on the street for homeless or refugees. Especially the previous year, when thousands of refugees have crossed greece to move on other european countries, solidarity groups in islands, Eidomeni (on the borders with Makedonia) and city centers have cooked for them, or helped them cooking by themeselves. Nowadays, after borders close-down, the refugees remained in camps try also to enrich their poor meals by cooking with self-designed apparatus.\u00a0\n","comment_id":"24593","post_id":"6431","user_id":"8984","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 17:11","group_id":"0"}},{"node":{"title":"Thanks","content":"\nThank you @Rune!\u00a0The article on the polio is quite an interesting read.\n","comment_id":"24592","post_id":"6674","user_id":"8927","parent_comment_id":"24239","creation_date":"Tuesday, September 20, 2016 - 16:46","group_id":"0"}},{"node":{"title":"When will you visit us?","content":"\n@ybe I'd like to know when will you visit Greece. I think it will be helpfull for the team.\u00a0\n","comment_id":"24590","post_id":"6729","user_id":"8957","parent_comment_id":"24395","creation_date":"Tuesday, September 20, 2016 - 15:55","group_id":"0"}},{"node":{"title":"I'd love to exchange informations","content":"\nDear @ybe, can I propose that we do the discussion in a shared document, i'll send you the link. Then it could evolve into some structured persitent document serving others sharing our thoughs?\nOthers wanting to join, please send me a message.\n\u00a0\n","comment_id":"24589","post_id":"6746","user_id":"8837","parent_comment_id":"24496","creation_date":"Tuesday, September 20, 2016 - 15:22","group_id":"0"}},{"node":{"title":"Turning a technology into a product","content":"\nNice post @Vassilis Giannakopoulos - SciFY\u00a0\nId like to know more about how you do it (the report seems to be missing) thats why we propose the WeHandU initiative, Maybe we could collaborate?\nHow do you 'recruit' your 'clients'?\n","comment_id":"24588","post_id":"6699","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 14:20","group_id":"0"}},{"node":{"title":"Ready to share your story this Saturday","content":"\nHello @DavidFromAntwerp\nthanks to share your concern about this topic. On saturday we are organizing a workshop between people who want to better the system around care by sharing their vision and focus. Your imput would be wonderfull. If you can participate send me a message. All info can be found here:\u00a0https:\/\/www.facebook.com\/events\/280924708934187\/\n\u00a0\n","comment_id":"24587","post_id":"6789","user_id":"8743","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 13:51","group_id":"0"}},{"node":{"title":"Reminds me of how people respond to death","content":"\nI found this an interesting read. I remember meeting someone recently, an ex-soldier, who lost her leg in Iraq. Initially I felt awkward about acknowledging the (obvious) fact of her disability - but once I started talking to her, it felt natural to ask her whether she was still able to go running (something she had said she used to enjoy). Actually she said that her false limb was so good that she could still enjoy running. It felt very good to talk ina natural way about her disability.\nIn speaking to her, I was encouraged by a memory of my experience many years ago, when someone close to me died. Afterwards, many close friends found it really difficult to talk about it with me - yet I was more than happy to talk about it, indeed it felt very unnatural not to. I suppose, in some ways, grief is a form of disability...\nAnyway, thank for posting.\n","comment_id":"24586","post_id":"6443","user_id":"446","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 12:09","group_id":"0"}},{"node":{"title":"Can you clarify?","content":"\n@sucreblue it is lovely to read you, welcome to the community, and to OPENandChange bid - I saw you are formally onboard.\nFrom the description of the service being peer-led I understand that the people doing the screenings, the caregivers are trained citizens? Or do they have medical background? I'm asking because the first makes for a model we keep seeing and others are advocating for similar ones - where building alternatives to systems means training ourselves into becoming carers. Because the systems are understaffed or too rigid to provide\u00a0low cost access to treatments with low overhead.\nYou should definitely go in and meet the people at @concrn training community dispatchers for the homeless, or at @MAZI fighiting depression together. Or closer to home - how building cheap eco-coolers from plastic bottles helps people cope with heat.\u00a0They are all community led solutions.\n","comment_id":"24585","post_id":"6791","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 11:13","group_id":"0"}},{"node":{"title":"Personal story?","content":"\nHi @careday-team, welcome.\u00a0\nDid this happen already or is it an idea?\nI can see the argument working in some communities more than as a general campaign - for example where this care gap is degenerative in that it correlates with\u00a0lack of self confidence in women, or housework\u00a0burnout, or even domestic violence in the worst cases.. \u00a0\nI haven't done\u00a0awareness raising campaigns, but it could be that for the impact you're looking for a deep value based argument would be more easily turned around by anyone with a difft agenda. \u00a0\u00a0\nIf you can insert links to the stats or numbers you're referencing it would be great!\n","comment_id":"24582","post_id":"6781","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 08:24","group_id":"0"}},{"node":{"title":"How can we help?","content":"\nHi @DavidFromAntwerp my name is Noemi, and my story has more problems than solutions.\nIs there anything that you are working on at the moment where Edgeryders can be of help? Right now many conversations here revolve around the question of how can groups of people and communities take better care of each other, with members sharing bits of their work or projects and hoping to find answers and advice. Have a look at the collection and see if there's something which interests you?\n","comment_id":"24581","post_id":"6789","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 08:02","group_id":"0"}},{"node":{"title":"GNU Health is a sister","content":"\nGNU Health is a sister initiative which we discovered at the Open Source Initiative and some time later at the Internation Symposium on Open Collaboration.\nGNU Health concept is simple as free software: all people should collaborate to build a common of knowledge instead of building competitive, exclusive systems that hinder access to healthcare services of quality. GNU Health ensures that the different therapists and doctors who follow our children have the best available information about them, so that they can provide the best advices for the best health outcomes.\nThanks for all efforts put in developing this project!\n","comment_id":"24578","post_id":"6765","user_id":"8955","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 00:26","group_id":"0"}},{"node":{"title":"A key support to dive into the knowledge \/ collaborative economy","content":"\nSensorica has had a major impact on our initiative, not only by having engineers and passionate jack-of-all-trade help us create an open source breathing device, but also by showcasing a sustainable and transparent model for redistributing raised fund, which we adopted. We are looking forward to this adventure.\n","comment_id":"24577","post_id":"6782","user_id":"8955","parent_comment_id":"0","creation_date":"Tuesday, September 20, 2016 - 00:11","group_id":"0"}},{"node":{"title":"Pocket University?","content":"\nWow, @Michel , that seems to be a difficult problem. Infrastructure as basic as what you describe for Madagascar is out of my experience (I lived in Europe my whole life).\u00a0\nAll I can say is that the whole opencare thing is really not relying on government. The stories you read here are all stories of self-sufficiency somehow.\u00a0\nEducation, peer to peer, in a developing country: this sounds like a project @Matthias is developing in Nepal. He calls it \"pocket university\". Matt, do we have a link to the idea yet?\n","comment_id":"24576","post_id":"6772","user_id":"34","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 23:00","group_id":"0"}},{"node":{"title":"@Matthias Look, don't you","content":"\n@Matthias Look, don't you miss the smell of Bagmati ?:)\n","comment_id":"24575","post_id":"6783","user_id":"678","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 22:47","group_id":"0"}},{"node":{"title":"Informal for the win","content":"\nYou are probably not asking me, @Luisa (what do I know about the Parks and Open Spaces Department in Berlin, apart from the fact that its nam is probably one really long German word?). But if you can pull it off, an informal, safe discussion between the authorities and the people is very valuable. If you have a courageous politician or senior public officer at hand, you could ask her to come along as facilitator; the Parks people would feel authorized to attend\u00a0because she is there, and they could have a chat off the record. But you need the right person.\u00a0\n","comment_id":"24574","post_id":"6401","user_id":"34","parent_comment_id":"23196","creation_date":"Monday, September 19, 2016 - 22:43","group_id":"0"}},{"node":{"title":"What about municipality?","content":"\n@Louisa good luck with your idea!\u00a0\u00a0I've had\u00a0something like this in mind\u00a0but I didn't find enough funs for this\u00a0Urban Cooking. You can have a formal green light if the municipality (or whatever) agrees and then you can organise the routine part like informal just for the atmosphere. In Greece we have strict rules (only in papers) about public spaces but every municipality has special Regulatory Decisions. The municipality services inform about the legality and in cooperation with the councilors or\/and the citizens apply the final idea. Did you ask the topical authorities about that?\n\n\n\u00a0\n","comment_id":"24572","post_id":"6401","user_id":"8957","parent_comment_id":"23196","creation_date":"Monday, September 19, 2016 - 21:45","group_id":"0"}},{"node":{"title":"Twas ever thus..","content":"\n>\u00a0every one of those terms has an ideology behind it\nAbsolutely correct.\nOver the past eight years, in addtion to other duties as a manager of an organization, I administered the health care benefit for my employees. \u00a0This all took place during the whole Obamacare\/socialized medicine debate.\nAs you know, in politics, one gets ahead by identifying and demonising a bad guy. \u00a0In that debate the bad guys were the health insurance companies. \u00a0Plenty of blame to go around with that group, no question.\nBut in shopping for the best plans, I noticed something interesting. \u00a0If we opted for a plan where the pharmaceudicals were all generic, the premiums for each employee was reduced by half. \u00a0By half! \u00a0No other cost reduction option even came remotely close to that. \u00a0So,\u00a0if half the expense is going to the drug companies for their proprietary drugs, then shouldnt they have figured a little more heavily in the national debate? \u00a0(Actually it did with one candidate - Bernie Sanders.) \u00a0\nOne would think, but in my view, that would have complicated things too much for the huge numbers of people who need everything in the public sphere dumbed down so they can grasp it. \u00a0(I hate to say such things because it sounds so elitist, but after decades of involvement with the public dialogue I can't avoid that conclusion.)\n","comment_id":"24571","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:55","group_id":"5954"}},{"node":{"title":"Twas ever thus..","content":"\n>\u00a0every one of those terms has an ideology behind it\nAbsolutely correct.\nOver the past eight years, in addtion to other duties as a manager of an organization, I administered the health care benefit for my employees. \u00a0This all took place during the whole Obamacare\/socialized medicine debate.\nAs you know, in politics, one gets ahead by identifying and demonising a bad guy. \u00a0In that debate the bad guys were the health insurance companies. \u00a0Plenty of blame to go around with that group, no question.\nBut in shopping for the best plans, I noticed something interesting. \u00a0If we opted for a plan where the pharmaceudicals were all generic, the premiums for each employee was reduced by half. \u00a0By half! \u00a0No other cost reduction option even came remotely close to that. \u00a0So,\u00a0if half the expense is going to the drug companies for their proprietary drugs, then shouldnt they have figured a little more heavily in the national debate? \u00a0(Actually it did with one candidate - Bernie Sanders.) \u00a0\nOne would think, but in my view, that would have complicated things too much for the huge numbers of people who need everything in the public sphere dumbed down so they can grasp it. \u00a0(I hate to say such things because it sounds so elitist, but after decades of involvement with the public dialogue I can't avoid that conclusion.)\n","comment_id":"24571","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:55","group_id":"5954"}},{"node":{"title":"American opinion seems easy to manipulate","content":"\nin certain ways. \u00a0Millions of not very bright people who derive their understanding of the world through a mix of TV and their own predjudices and assumptions view the healthcare status quo as being one where they have more individual choice. \u00a0(Obanacare = socialism and \"death panels.\")\u00a0Over here that is like a core religious belief, so if you can convince people they will have fewer choices then it isn't that hard to get them to oppose it, even though it is not in their economic interest to do so. \u00a0Indeed the fact that Ronald Reagan got elected largely with the support of such people is a perennial case in point.\n","comment_id":"24570","post_id":"6752","user_id":"8169","parent_comment_id":"24565","creation_date":"Monday, September 19, 2016 - 20:46","group_id":"5954"}},{"node":{"title":"American opinion seems easy to manipulate","content":"\nin certain ways. \u00a0Millions of not very bright people who derive their understanding of the world through a mix of TV and their own predjudices and assumptions view the healthcare status quo as being one where they have more individual choice. \u00a0(Obanacare = socialism and \"death panels.\")\u00a0Over here that is like a core religious belief, so if you can convince people they will have fewer choices then it isn't that hard to get them to oppose it, even though it is not in their economic interest to do so. \u00a0Indeed the fact that Ronald Reagan got elected largely with the support of such people is a perennial case in point.\n","comment_id":"24570","post_id":"6752","user_id":"8169","parent_comment_id":"24565","creation_date":"Monday, September 19, 2016 - 20:46","group_id":"5954"}},{"node":{"title":"not so many","content":"\nI can't speak to places like Germany and Sweden, but the numbers of refugees in most EU countries are very low compared to the overall population - and the ones who managed to get there tend to be younger and more able, so not placing huge demands on health care per se.\nThat's an interesting point about the apoliticality of Open Care - in the party political sense, of course it should not be aligned with a particular side. But if politics just means 'how we organise things in our society', then it is very much political - and if it does bring about significant change, it's bound to be seen as such by some people.\nA current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.\n","comment_id":"24569","post_id":"6752","user_id":"1915","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:42","group_id":"5954"}},{"node":{"title":"not so many","content":"\nI can't speak to places like Germany and Sweden, but the numbers of refugees in most EU countries are very low compared to the overall population - and the ones who managed to get there tend to be younger and more able, so not placing huge demands on health care per se.\nThat's an interesting point about the apoliticality of Open Care - in the party political sense, of course it should not be aligned with a particular side. But if politics just means 'how we organise things in our society', then it is very much political - and if it does bring about significant change, it's bound to be seen as such by some people.\nA current example - kind of the opposite to Obamacare - are the moves in the UK by the current government to privatise aspects of the NHS. They will say that it is not about political ideology, it's just about being more 'efficient' and using 'the invisible hand' of market forces to drive costs down, and that we can't afford not to in a time of 'austerity' - but every one of those terms has an ideology behind it; assumptions and values about what healthcare is, what a society is, what government is for, etc.\n","comment_id":"24569","post_id":"6752","user_id":"1915","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:42","group_id":"5954"}},{"node":{"title":"Ah, kitchens...","content":"\nIt is true that space and care intertwine. At least, this seems to be the experience in Edgeryders. The kitchen was a fundamental infrastructure in the unMonastery; and @Luisa and @Cindy P. , while wondering how to support refugees,\u00a0both have found that cooking is fundamental to care (one, two)\n\u00a0Even in my own home, at the second iteration we acquired two fully functional kitchens, but we decided to only ever to use one of them, because this leads more naturally to us mingling, chatting, spending time together. I even put music equipment and computers on the work surfaces and the stove of the unused kitchen, to make sure no one is tempted to use it! :-)\n","comment_id":"24568","post_id":"6762","user_id":"34","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:40","group_id":"0"}},{"node":{"title":"philosophical question @Alberto ","content":"\nmaybe this is part of an answer:\n\nIt is for me ... making a difference for someone makes me feel profoundly human, part of humanity ... I think connecting, helping, supporting, caring restores humanity in us, in the other and in the world\n","comment_id":"24567","post_id":"6767","user_id":"8959","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:37","group_id":"0"}},{"node":{"title":"But with so many refugees now","content":"\nplacing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?\nAlso, Open Care is a distinctly apolitical effort, but after it gains some traction both specifically and as a meme that propagates, I see a danger in attempts at co-opting or using it by political forces wanting to channel the narrative - and the money - to a particular agenda. \u00a0Of course this is from someone in the US where everything is political on some level.\n","comment_id":"24566","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:21","group_id":"5954"}},{"node":{"title":"But with so many refugees now","content":"\nplacing increased demands on health care - and the budgets that support it - it it not becoming more politicised in the EU?\nAlso, Open Care is a distinctly apolitical effort, but after it gains some traction both specifically and as a meme that propagates, I see a danger in attempts at co-opting or using it by political forces wanting to channel the narrative - and the money - to a particular agenda. \u00a0Of course this is from someone in the US where everything is political on some level.\n","comment_id":"24566","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:21","group_id":"5954"}},{"node":{"title":"US\/UK","content":"\nThanks, @Alberto, you are right, I was mostly thinking of the UK example, and the way in which healthcare at the point of delivery is seen as a neutral, technocratic institution. The recent junior doctors' strike shows the same pattern: doctors being criticised for 'politicising' healthcare, as if everything about it is not already political.\nBut I would venture [not living there, but observing from afar] that there is a similar issue in the US - people think of the status quo as 'normal' and don't see that it already has a political dimension, so attempts to disrupt the massively wasteful insurance\/medical cartel [as Obamacare made some small steps to do] come up against lots of resistance even from people who might benefit from change.\n","comment_id":"24565","post_id":"6752","user_id":"1915","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:19","group_id":"5954"}},{"node":{"title":"US\/UK","content":"\nThanks, @Alberto, you are right, I was mostly thinking of the UK example, and the way in which healthcare at the point of delivery is seen as a neutral, technocratic institution. The recent junior doctors' strike shows the same pattern: doctors being criticised for 'politicising' healthcare, as if everything about it is not already political.\nBut I would venture [not living there, but observing from afar] that there is a similar issue in the US - people think of the status quo as 'normal' and don't see that it already has a political dimension, so attempts to disrupt the massively wasteful insurance\/medical cartel [as Obamacare made some small steps to do] come up against lots of resistance even from people who might benefit from change.\n","comment_id":"24565","post_id":"6752","user_id":"1915","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 20:19","group_id":"5954"}},{"node":{"title":"You are unusually politically sophisticated!","content":"\nI may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product:\u00a0\"Support us, and there will be\u00a0more money for health care!\". They can do this because\u00a0everybody\u00a0agrees that funding public health care is a good thing. In this sense, even though it's still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it's part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.\u00a0\nWe (Italians, possibly the British too)\u00a0do not think of health care as political because it's not divisive as a basic choice. I appreciate ours is not a sophisticated position.\n","comment_id":"24564","post_id":"6752","user_id":"34","parent_comment_id":"24562","creation_date":"Monday, September 19, 2016 - 20:03","group_id":"5954"}},{"node":{"title":"You are unusually politically sophisticated!","content":"\nI may be way off the mark here (I am not British), but I think @steelweaver is thinking of the way the Leave campaign in the recent Brexit referendum used NHS funding as am electoral promise to sell their product:\u00a0\"Support us, and there will be\u00a0more money for health care!\". They can do this because\u00a0everybody\u00a0agrees that funding public health care is a good thing. In this sense, even though it's still entangled with politics in complex ways, public health care as a principle is bipartisan in the UK. Italy is the same: it's part of our identity. Attacks do not come from groups trying to defund it, but from groups trying to parasitize it, for example supplying it with (super-expensive, proprietary) equipment.\u00a0\nWe (Italians, possibly the British too)\u00a0do not think of health care as political because it's not divisive as a basic choice. I appreciate ours is not a sophisticated position.\n","comment_id":"24564","post_id":"6752","user_id":"34","parent_comment_id":"24562","creation_date":"Monday, September 19, 2016 - 20:03","group_id":"5954"}},{"node":{"title":"What a beautiful post!","content":"\nThis is not just informative, it's\u00a0literary.\u00a0And I sometimes wonder if you don't need the beauty for the information to hit home.\nAs I read about the volunteers life in The Jungle, I am brought back to an impression I have had all through this opencare project. The impression is this: \"the economy\", \"society\", the world we know is only paper thin. Behind the surface of\u00a0carbonated drinks and targeted advertising and employment figures\u00a0and pre-election rallies, I glimpse self-organisation reaching out for ways to cater to our needs. It seems like it percolates through the crack of society, colonizing immediately any area that \"the economy\" retreats from. This could be why there are so many great stories from Greece coming through; Helliniko and\u00a0@OrangeHouse , @Aravella Salonikidou and her strange \"not some social space\", @MAZI , @Tree of Life , @To-Steki , @Jenny Gkiougki , @Noesi ... Greece has suffered more than most countries, and yet there is so much resilience.\nMayble another world is not just possible, it's inevitable. Maybe these communities are humanity's default configuration, and we are only held in place in large hierarchical system by massive dissipation, and even then just about.\u00a0\nVolunteers in The Jungle are sad, broken, exhausted. Why don't they go home? \"We feel responsible\", says Alex. Not good enough. Why do you feel responsible? Humans seem to be naturally building mutual help communities. Why? What are we missing?\u00a0\n","comment_id":"24563","post_id":"6767","user_id":"34","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 19:47","group_id":"0"}},{"node":{"title":"In the USA all healthcare is political","content":"\n\"Obamacare\" is arguably the number one political debate along with immigration and national security.\nAnother aspect is student loans. \u00a0For years students have taken out loans to attend universities. \u00a0For years the government set low interest rates and wasn't aggressive in going after delinquent accounts. \u00a0That changed some years ago and those loans are now both very expensive and likely to scar your entire working life if you don't pay them on time. \u00a0I submit that is has a chilling effect on people seeking careers in medicine and health care at the higher levels. \u00a0And it is certainly a huge reason why there is such a shortage of general practitioners compared to specialists. \u00a0A GP has to take many more years to pay off their student debt.\nI could go on and on. \u00a0But the point is that it is impossible to separate health care from the political debate in the US, and probaly everywhere else.\n","comment_id":"24562","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 19:17","group_id":"5954"}},{"node":{"title":"In the USA all healthcare is political","content":"\n\"Obamacare\" is arguably the number one political debate along with immigration and national security.\nAnother aspect is student loans. \u00a0For years students have taken out loans to attend universities. \u00a0For years the government set low interest rates and wasn't aggressive in going after delinquent accounts. \u00a0That changed some years ago and those loans are now both very expensive and likely to scar your entire working life if you don't pay them on time. \u00a0I submit that is has a chilling effect on people seeking careers in medicine and health care at the higher levels. \u00a0And it is certainly a huge reason why there is such a shortage of general practitioners compared to specialists. \u00a0A GP has to take many more years to pay off their student debt.\nI could go on and on. \u00a0But the point is that it is impossible to separate health care from the political debate in the US, and probaly everywhere else.\n","comment_id":"24562","post_id":"6752","user_id":"8169","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 19:17","group_id":"5954"}},{"node":{"title":"Questions","content":"\nWhat a wonderful job you're doing. Having experience in the health system we know how frustating can be to see how people can suffer and die from deseases that could be trated. What can be done in order to make these communities sustein themselves?!\n","comment_id":"24561","post_id":"6725","user_id":"8990","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 18:54","group_id":"0"}},{"node":{"title":"Very inspiring","content":"\nWhat an inspiring story, @MAZI.\nThank you so much to share it. Knowing many people soffering from depression and knowing how they can be judged in the wrong way, it's very refereshing to see there is hope out there. How can people get in touch with you?\n","comment_id":"24560","post_id":"6777","user_id":"8990","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 18:38","group_id":"0"}},{"node":{"title":"Intriguing, but... I can't read Greek!","content":"\nHello and welcome, @Tree_of_Life. This seems really intriguing. It looks like your group is not zeroing in one one purpose (\"we repair old computers that were being thrown away and donate them to local schools\", but rather try to help each other live fulfilling lives. From collecting shoes to theatre, excursions to workshops you seem to be doing a lot of things, focusing on the people in the group rather than on any one activity.\nAdditionally, it seems you are listing\u00a0yourselves\u00a0(the parents) among the beneficiaries. This also very intriguing, and\u00a0close to the vision we are pursuing with opencare: people self-organize in communities to take care of each other.\u00a0\nThese are impressions based on this post. Did I get it more or less right?\u00a0I checked out your links, but as I cannot read Greek I could not get any extra information. :-)\n","comment_id":"24559","post_id":"6774","user_id":"34","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 18:33","group_id":"0"}},{"node":{"title":"Interesting","content":"\nWhat an interesting project. I really don't know much about these kind of experinces but what I would really like to know is how people get in touch with you and how do they decide to become part of a community? Do they stay for a long time? Are there any children that grew up and then moved away? Do you get any financial help from the government?\n\u00a0\nThank you!\n","comment_id":"24557","post_id":"6756","user_id":"8990","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 18:07","group_id":"0"}},{"node":{"title":"agree","content":"\n\"Healthcare is largely seen as a 'value-neutral', apolitical issue, and it's so important to put it back in its political context\"\nCouldn't agree more with you here. Certainly, given what is happen in the UK at the moment it is really important that both the wider community and the medical professionals themselves understand that they stand in a highly politicised space. I think it's time we stopped demanding our doctors and medical practitoners pretend they somehow exist outside of the politcal\u00a0world around them\n","comment_id":"24553","post_id":"6752","user_id":"6559","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 15:20","group_id":"5954"}},{"node":{"title":"agree","content":"\n\"Healthcare is largely seen as a 'value-neutral', apolitical issue, and it's so important to put it back in its political context\"\nCouldn't agree more with you here. Certainly, given what is happen in the UK at the moment it is really important that both the wider community and the medical professionals themselves understand that they stand in a highly politicised space. I think it's time we stopped demanding our doctors and medical practitoners pretend they somehow exist outside of the politcal\u00a0world around them\n","comment_id":"24553","post_id":"6752","user_id":"6559","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 15:20","group_id":"5954"}},{"node":{"title":"Hey everyone, thanx for your","content":"\nHey everyone, thanx for your comments!\nOur group is based in Thessaloniki but it is connected with a global network of tools and projects with the vision to expand an alternative and fair economy through cooperation, or let\u2019s say to create sustainable economic solutions through cooperativism. In Greece there is already many cooperatives, especially created as a result of the economic crisis, either under a legal form or remaining informal, and we want to support their networking as well as to expand the network through creating new cooperative initiatives.\nOne of the tools to connect those and at the same time to untie ourselves from the banking system is alternative currency networks and FairCoin is already doing this on a global level. However the currency is just a tool, what is most important is the vision and the values that incorporate the efforts. In Thessaloniki, we started quite recently but there is already some places that joined and we hope to see more of them joining very soon. In Greece there is more places in Athens and the island of Crete, where FairCoin is further connected to the local currency of Herakleion. @Noemi you can find a global directory with all the places using FairCoin here.\n@WinniePoncelet this is certainly not an easy task, especially when the effort is being made on a global scale and you are trying to create change in a global scale. But we hope that cooperation can help with all the progress. The biggest challenge I see is trust and empowerment, people to trust each other and believe that collectively they can change things. So trust to each other and trust to collective power, rather than being disconnected and antagonistic. From so many sides we are being trained to not trust each other and our collective power, but I believe that culture is gradually changing and people are becoming more inclined to create communities and cooperate. Technology and to a certain extent the economic crisis have supported that.\n@Simonedb I agree with you that it is extremely important to remain open to other ideas and projects, and this is why we were so happy to participate at the Edgeryders workshop in Thessaloniki where we met this amazing community of people! At the same time, it is also important to have clear values and objectives, so that people trust you. So openness, cooperation and values can go a long way and can bring very creative results, especially on a large or global scale.\nI invite people interested in our efforts to visit FairCoop\u2019s website and if you wish to be more actively involved or have ideas to share, please leave a message or join our telegram groups which we use for networking and communication, by sending an e-mail to: coop@fair.coop!\nPS: @Noemi, I don\u2019t think we have met before, do you mean the Festival of Solidarity and Cooperative Economy in Athens? I have been there, but since I live in Thessaloniki I am not part of the organizing team. However our group here is connected with the people in Athens and also people organizing the festival. There is another Christina among them so perhaps this is who you mean? :)\n","comment_id":"24550","post_id":"6747","user_id":"8960","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 12:49","group_id":"0"}},{"node":{"title":"How do people fight the stigma?","content":"\nSo inspiring to read you @MAZI. I especially liked that group facilitators are trained group members and that someone can step into different roles,\u00a0even skill up in a process that difficult.\u00a0\nThere are no expert lectures and no self-pity parties. -well said. @kate g, another edgeryder,\u00a0said something similar about \u00a0how conversation in which neither party is an expert can be lifechanging.\nI'm curious about\u00a0the\u00a0group which seems more or less open - can anyone who reports\u00a0feeling down or unable to cope join you? Considering how difficult it is to make that step due to the fear and stigma attached, are you making any prior efforts to invite people in or signal somehow that this is a different approach?\n","comment_id":"24551","post_id":"6777","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 19, 2016 - 11:11","group_id":"0"}},{"node":{"title":"Ambiguity and initiative ","content":"\nHi @Aravella, \u00a0Alternative school is never been taken before. \u00a0The Malagasy government was hiring some substitutionals teachers five-year ago to give some help others teachers, it was efficient,but fact is they're still unpaid since 7 mouths, about solidarity teachers is quite far if they don't get hired or paid again. \u00a0Some parts of Madagascar doesn't get electricity yet, Internet access is limited and expensive sometime. \u00a0Communal Library is rare, there are old books since 70's to 90's sometime \u00a0no book but lot of dust and ruins.\u00a0\n","comment_id":"24549","post_id":"6772","user_id":"8857","parent_comment_id":"24537","creation_date":"Monday, September 19, 2016 - 09:50","group_id":"0"}},{"node":{"title":"Great work!","content":"\n\"It is really like a house, not like a social service type of place. \"\nWelcome, @OrangeHouse . You capture beautifully the spirit of opencare. And yes, you need salsa teachers and roof gardeners to deal with the, ahem, refugee crisis. And acupuncturists, like @steelweaver , and trauma therapists like @ybe , and actors and poets like @Alex Levene . I think @Thom Stewart and the Galway crowd would also enjoy the story...\u00a0\nThere seems to be\u00a0something going on in the background: you are not being stopped, even though you are definitely in some kind of semi-legal grey area. The story of the Helliniko Metropolitan Community Clinic is similar: no legal entity, but the authorities look the other way (in fact they cooperate, unofficially). There are definitely some humane and brave bureaucrats at work in the Greek public sector!\u00a0\n","comment_id":"24548","post_id":"6754","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 22:32","group_id":"0"}},{"node":{"title":"We can cooperate","content":"\nThessaloniki has the right size for mapping and get results quickly. The people who care know each other. Due to refugee\u00a0wave they\u00a0gained more experience and identified common problems.\n@Pavlos\u00a0I've lost your workshop but we 'll help this mapping\u00a0anyway.\u00a0Thank you!\n","comment_id":"24543","post_id":"6713","user_id":"8957","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 20:27","group_id":"0"}},{"node":{"title":"Good Job!","content":"\nI'm happy for this\u00a0Orange House! I thing here in Thessaloniki we don't have something like\u00a0this. A \"copy paste\" is not possible when we talk about people\u00a0but your advices could be very helpful. How can we follow and share your project?\n","comment_id":"24538","post_id":"6754","user_id":"8957","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 20:00","group_id":"0"}},{"node":{"title":"Alternative schools","content":"\nHi @Mishel! What about alternative schools?\u00a0Solidarity teachers and maybe school from distance. Through radio or internet if it's possible. And not only typical lessons but also music, dance, poetry e.t.c. What about libraries in Magadascar?\n","comment_id":"24537","post_id":"6772","user_id":"8957","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 19:36","group_id":"0"}},{"node":{"title":"tapping","content":"\nI haven't come across that exact technique - a quick google suggests it is a modified version of EFT suitable for people with more acute trauma.\nWhat I have heard from colleagues [and here] is that these tapping techniques work, but mostly because the tapping helps to distract\/reorient the system to allow the trauma to be released, rather than because it is a specifically effective sequence of acupuncture points.\nThat said, acupuncture points are areas that initiate particularly high physiological responses, so if you are going to be tapping yourself, arguably you might as well do it on acupuncture points to get an even better effect. And doing a sequence of points in all the areas of the body will ensure that no forgotten area retains the tension of the trauma.\nIn short - it's probably worth giving it a try!\n","comment_id":"24533","post_id":"6304","user_id":"1915","parent_comment_id":"24528","creation_date":"Sunday, September 18, 2016 - 18:35","group_id":"0"}},{"node":{"title":"healthcare in political context!","content":"\nThis really spoke to me. Healthcare is largely seen as a 'value-neutral', apolitical issue, and it's so important to put it back in its political context, and to see that our attitudes towards it are framed by the wider values of our society. It looks like Woodbine are doing some great work on this.\nAttitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'.\nI wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this?\nI should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility.\nIf you have a community library, Peter Deadman's latest might make a great addition - not only does it cover a whole range of areas [general health, pregnancy, ageing, etc] but it cites lots of western science to back up the older eastern practices.\u00a0\n","comment_id":"24530","post_id":"6752","user_id":"1915","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 18:14","group_id":"5954"}},{"node":{"title":"healthcare in political context!","content":"\nThis really spoke to me. Healthcare is largely seen as a 'value-neutral', apolitical issue, and it's so important to put it back in its political context, and to see that our attitudes towards it are framed by the wider values of our society. It looks like Woodbine are doing some great work on this.\nAttitudes towards alternative medicine are a case in point - not only is there resistance from the medical institutions [often ignoring solid evidence supporting the practice], but ordinary people pick up on that and are averse to being involved with something that doesn't have the approval of the medical 'authorities'.\nI wonder if the Woodbine folk have encountered any resistance to 'woo' things like TCM and Feldenkrais, and if so, how they have overcome this?\nI should also put in a shout for the Chinese tradition of Yang Sheng - non-industrialised health practices that aren't just about physical fitness, and that can be suitable for those recuperating or without full physical mobility.\nIf you have a community library, Peter Deadman's latest might make a great addition - not only does it cover a whole range of areas [general health, pregnancy, ageing, etc] but it cites lots of western science to back up the older eastern practices.\u00a0\n","comment_id":"24530","post_id":"6752","user_id":"1915","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 18:14","group_id":"5954"}},{"node":{"title":"traumatapping","content":"\n@steelweaver, as an acupuncturist, do you know this tapping technique: http:\/\/peacefulheart.se\/trauma-tapping-technique and do you think it is effective?\n","comment_id":"24528","post_id":"6304","user_id":"8959","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 17:59","group_id":"0"}},{"node":{"title":"Thx @steelweaver for your","content":"\nThx @steelweaver for your comment. As for the somatic apporach, I totally agree. I often use somatic experiencing, especially for chock trauma. Before going to Calais, I need to look up soms good group exercices for the volunteers. Suggestions welcome.\n","comment_id":"24525","post_id":"6746","user_id":"8959","parent_comment_id":"24524","creation_date":"Sunday, September 18, 2016 - 17:49","group_id":"0"}},{"node":{"title":"models of group trauma management","content":"\nHi @Alberto, and thanks for a great and inspiring post, @ybe!\n\nA couple of examples of previous models spring to mind:\n- People used Somatic Experiencing techniques with survivors of the Boxing Day tsunami, and with social service workers after Hurricane Katrina, with some success. Here's a nice TV spot on it being used in a group setting post-Japan earthquake.\n- Somatherapy was developed during the military junta in Brasil as a combination of psychotherapy, capoeira and anarchist theory. It favours use of enjoyable, play-based physical activities and emphasises placing individual mental health within the larger political context.\nPredictably enough, given my day job, my bias is towards body-based practices, or at least forms of psychotherapy that incorporate some aspect of physical engagement - I don't know if @ybe already incorporates these ideas in her practice, and in any case other forms of psychotherapeutic intervention are also very effective.\nBut the advantages of this kind of approach, as I see it, are:\n- They engage with the somatic anchoring of trauma, bringing quick results.\n- The physical nature of the practices can help overcome language difficulties, which might be useful in a scenario like Calais.\n- They can be applied efficiently in a group setting - rather than waiting their turn to speak, everyone engages in the practices at once.\n- Because individuals can continue to use the exercises outside the therapy session, fewer sessions are necessary, meaning lower costs and\/or more people can be seen.\n- Somatherapy in particular also emphasises the importance of group work as part of building a community of solidarity and support in the face of potentially oppressive political situations; moving beyond reliance on external care to develop personal and political assertiveness.\nOf course, acupuncture is also used extensively in relation to trauma, either alone or as an adjunct to psychotherapy. Organisations like World Medicine run multibed acupuncture projects in places affected by natural disasters, war and poverty. I know of at least one British acupuncturist treating people in the Calais camp, but perhaps @Alex Levene would know more about that.\n\u00a0\n","comment_id":"24524","post_id":"6746","user_id":"1915","parent_comment_id":"24382","creation_date":"Sunday, September 18, 2016 - 17:28","group_id":"0"}},{"node":{"title":"really so many questions","content":"\none big asnwer. i - we dont wanna say we are the best, we are the benchmakr. we failed a lot of times. becasue mainly co-living takes time and it is not a professional activity. this is not a community like organization that lives as a whole, it is the sum of families which tried to improve a better way of living in a light way. so no huge ambition was inside it, so i feel that everything that happen is like a miracle, even with all the troubles and limitation increased also by the economic crises that hit so many of us here.\nthe very very starting point was a private real estate project that used co-hpusing as amktg attractor, but then the community create and organised itself, even because the company disappered afterselling - here my comments abot hard to relie on biz people fo these kind, we should develop out own independent way to create this places,\u00a0everybody bought home, no rent was possibile, but..why not.\nmicrowelfare. we sill live in a \"normal way\"...but we share time, infromation, products, \u00a0skills, decision maing on shared purchases...anycase it is a light version of what you think.\nwe acted on single issues like local areas transformation together with other gourps, we hosted meeting people, activties of other assocaition and took aprt in them.\ninfromal relatioship with neightbour people\/family also nice. we had a purchase group for quite a while\nlocal government is burocratic-politics and slow, almost no budget...\nalso here we have many lesson learned also about mistakes.\n\u00a0\nother groups came here to get inspiration, infromation and advise about to form themself. few manged to do it. politecno of milan use us a good case to show what can be done as a minimum.\nwe had never had greater ambitions becasue it would need a lot of time..but with open and care some of us feel that we can finally give a stronger contribuition\n\u00a0\n","comment_id":"24513","post_id":"6756","user_id":"458","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 11:37","group_id":"0"}},{"node":{"title":"ability to go beyoind it ,","content":"\nability to go beyoind it , sense making, strnght, strong eliefe these are the words that i felt more powerful adn fitting to the video\u00a0and the project description.\ni feel the strength of a group with a shared mission and vision, soemthing that is strongly missing the modern individualistic society, and by the way it is based on a shared concrete experience of care.\nthis is many many are looking for as a way to sense making postmodernity values, for sure attarct intersted to more concretely understand how it works, how could develop, how could go beyoing queens and the founding group.\nhow much it is posisbile that co-living communities become a point of reference to each neightboorhood social growth...and then a nertwork of them become soemthing more impactful...\nsingle energies are often burn out or depressed by being alone or istitutionalised or politiced....here i see a cognitive breakthru...\n","comment_id":"24512","post_id":"6752","user_id":"458","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 11:14","group_id":"5954"}},{"node":{"title":"ability to go beyoind it ,","content":"\nability to go beyoind it , sense making, strnght, strong eliefe these are the words that i felt more powerful adn fitting to the video\u00a0and the project description.\ni feel the strength of a group with a shared mission and vision, soemthing that is strongly missing the modern individualistic society, and by the way it is based on a shared concrete experience of care.\nthis is many many are looking for as a way to sense making postmodernity values, for sure attarct intersted to more concretely understand how it works, how could develop, how could go beyoing queens and the founding group.\nhow much it is posisbile that co-living communities become a point of reference to each neightboorhood social growth...and then a nertwork of them become soemthing more impactful...\nsingle energies are often burn out or depressed by being alone or istitutionalised or politiced....here i see a cognitive breakthru...\n","comment_id":"24512","post_id":"6752","user_id":"458","parent_comment_id":"0","creation_date":"Sunday, September 18, 2016 - 11:14","group_id":"5954"}},{"node":{"title":"ok sounds like a good plan already","content":"\nok sounds like a good plan already\nI just send you an email. My mailadress is ybe@traumatour.eu and skype is chez_filly19\n\u00a0\n","comment_id":"24508","post_id":"6746","user_id":"8959","parent_comment_id":"24494","creation_date":"Saturday, September 17, 2016 - 14:59","group_id":"0"}},{"node":{"title":"Suboptimality","content":"\n@Alex Levene and @Aravella Salonikidou (and whoever is interested), let's all make a note to go deeper into the notion of suboptimality. I think it could be important. Normal policy is that\u00a0fast, messy, large scale response has to be stopped. Citizens are told to stay home, stay out of the way as the professionals dust off their contingency plans. If we can make a case for this to be the wrong thing to do in some case, it is goping to be an important policy contribution.\u00a0\n","comment_id":"24506","post_id":"6729","user_id":"34","parent_comment_id":"24500","creation_date":"Saturday, September 17, 2016 - 11:49","group_id":"0"}},{"node":{"title":"Ok, just another day at work.","content":"\nSo your work\/office\u00a0space is a prison,\u00a0members of your team are inmates, and it's not a one off because\u00a0you are setting up a proper organisation to turn this into something sustainable,\u00a0do I get it right?\nSo many fiction-like\u00a0cultural references come to mind :-) Really inspiring, and from reallife examples it\u00a0reminds\u00a0of the Brazilian Wasteland and how wasted\u00a0human potential can be turned into art.\nIf you are\u00a0able to spin this into a social economy \/\u00a0professional re-insertion kind of venture where you make a case about skill training, you might be able to access resources easier\u00a0than under artistic education or creative industry.. especially if\u00a0Greece has some subsidies\/ funding left for that field.\u00a0\nAlso, is there anywhere online where the museum works can be seen?\n","comment_id":"24503","post_id":"6761","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 23:51","group_id":"0"}},{"node":{"title":"Pings to make sure you don't miss the GNU Health project!","content":"\nNice to meet you @meanmicio, I'm nowhere near as knowledgeable about health systems as you, but some people here in the community are and should definitely read this (they may \u00a0have already heard about GNU Health): @Ivan Ezeigbo @wachsmuth @markomanka who can maybe help share this with networks.\nAre you finding that people and\u00a0established institutions\u00a0are transitioning to this easily (ideologically speaking)\u00a0or what do you see is an average learning curve? I'm guessing it's not a coincidence that it's becoming adopted more so in less\u00a0developed areas than the big West, which are already set on their ways.\u00a0\n","comment_id":"24502","post_id":"6765","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 23:21","group_id":"0"}},{"node":{"title":"I never understood this, but maybe you can enlighten me","content":"\nHey, I wonder if we\u00a0have met before here and there..? Were you at some point organising the Fest of Solidarity, circa two years ago? anyway..\nIs your group or another in Greece already using Faircoin, and where? Is anybody estimating how much use is needed in order to see communities or projects up and running and producing results thanks to\u00a0it?\n\nFor detailed\u00a0measurements\u00a0feel free to point me to resources,\u00a0I'm sure the story is longer..\nPS @Simonedb @woodbinehealth make sure you ping @ChristinSa or any edgeryders if you want to be sure they see your comment, notifications can get lost in the long stream.\n","comment_id":"24501","post_id":"6747","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 23:06","group_id":"0"}},{"node":{"title":"hello, maybe I can be of help","content":"\nhello, maybe I can be of help for the chapter 'how to cope with emotional\/mental suffering' in your handbook. In fact, I plan coming to greece with my Trauma Tour Bus - providing trauma information and therapy, and also 'help for the helpers' - we need to take care of our own energy and ressources too... Take a look at my website and contact me if you think we can work together.\n","comment_id":"24395","post_id":"6729","user_id":"8959","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 22:35","group_id":"0"}},{"node":{"title":"\"So, large mobilization doing","content":"\n\"So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help\"\nthis is definitely the case at the Calais camp\n","comment_id":"24500","post_id":"6729","user_id":"6559","parent_comment_id":"24486","creation_date":"Friday, September 16, 2016 - 22:30","group_id":"0"}},{"node":{"title":"Can we connect with someone in there?","content":"\n@Alberto do you think\u00a0we can contact someone\u00a0to learn\u00a0from the other side, from\u00a0a facilitator\/ community manager\u00a0involved in\u00a0a social policy like this, but hear\u00a0a personal experience nonetheless..?\u00a0I think it would add nicely to Simone's story.\n(I'm asking you because\u00a0I see Simone has a lot of questions addressed below, so no need to load more.. :)\u00a0\n","comment_id":"24499","post_id":"6756","user_id":"32","parent_comment_id":"24480","creation_date":"Friday, September 16, 2016 - 22:28","group_id":"0"}},{"node":{"title":"Developed","content":"\nI think i initially went out to help because i had a sense of purpose. I fesire to use my skills to help people most at need of them.\nAs my time went along though i certainly developed the sense of duty. I definitely saw this in the other long term volunteers i worked alongside.\nThe self care training was mostly around sharing best practice. Asking groups to share ideas around how they unwind, stress reduction, how they notice stress in themselves and others. \u00a0\n","comment_id":"24498","post_id":"6767","user_id":"6559","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 22:26","group_id":"0"}},{"node":{"title":"@Rune I think you're right:","content":"\n@Rune I think you're right: psychological aspects should be taken into account. Medical diagnosis and treatment are often very 'traumatic' = overwhelmingly disturbing. I don't know if I am the right person to advise Wehandyou - there must be traumaspecialists more familiar with the people affected by these kinds of\u00a0 trauma and the technology involved. Nevertheless, I am open to collaboration. Lets have a bit of a longer conversation on skype? What do you think?\n","comment_id":"24496","post_id":"6746","user_id":"8959","parent_comment_id":"24476","creation_date":"Friday, September 16, 2016 - 22:22","group_id":"0"}},{"node":{"title":"Absolutely","content":"\nI suggest a Skype call early next week. Perhaps Tuesday. you can email me alexalevene[at]gmail[.]com\nI'm no longer at the camp but i can definitely put you in contact with the best people to organise with. I know they would be really greatful if you could go along for a few days.\u00a0\nThe best use would probably be to spend a day talking to the management team and helping them develop an ongoing practice. Then a couple of days running large group training the daytime and one-to-one sessions in the evening.\nThere are a lot of people there who have a lot of different personal mental health issues. Its probably a better use of your time to focus on this 'secondary' trauma, rather than working with people who have experienced it.\nAlex\n","comment_id":"24497","post_id":"6746","user_id":"6559","parent_comment_id":"24494","creation_date":"Friday, September 16, 2016 - 22:22","group_id":"0"}},{"node":{"title":"@Alex_Levene","content":"\n@Alex Levene\nI would be happy to be of help for the Calais volunteers. How could we organise it? What do they need? Information about trauma and about helping traumatized people? 'Help with 'secondary' traumatisation (being traumatized by the suffering of others)? An in which way would it be doable - a workshop or a bring-your-questions informal\u00a0 conversation? Should we provide time for individual help too?How many people are involved?\nI could come over for a day or two, or tree in october of november, before touring to the south. I am fluent in EN, DE, FR and NL. Would it be a good idea to skype and talk things through?\n\u00a0\n","comment_id":"24494","post_id":"6746","user_id":"8959","parent_comment_id":"24454","creation_date":"Friday, September 16, 2016 - 22:21","group_id":"0"}},{"node":{"title":"Long awaited story..","content":"\n.. and well worth the wait. Thank you!\nInteresting how being a\u00a0caregiver comes not just from sense of purpose or attachment, but a sense of duty.\nAbout the training for self care: what was it like? I imagine that has something to do with how people find it hard to take days off,\u00a0\"switch off\" as you say..?\u00a0\n\u00a0\n","comment_id":"24495","post_id":"6767","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 22:06","group_id":"0"}},{"node":{"title":"So many questions","content":"\nThanks so much for sharing your story! Apologies in advance, this is pretty much all questions, I think we can learn a lot from your experience creating this form of housing and the way its changed over the years. I especially relate to and heed your advice about the too many meetings thing ;) . I\u2019m curious to know more about the impetus for starting such a project, if as you say didn\u2019t know each other and had no common identity or belonging, how did you find each other and make the\u00a0decision together?\u00a0 Also curious to know how it was initially funded, did you rent or buy a building and grow from there or did you build something new (the image with your post is a co-housing experiment I\u2019m somewhat familiar with, is it related somehow?).\nIn regards \u201cmicro-welfare\u201d and mutual support, have you communized your money or is there a separate fund that members pay into for these kinds of things? This is something we\u2019ve been discussing for our group and haven\u2019t figured out quite how to do it with the constraints of an economy like NYC. Have these things created a situation where people are able to work less or not at all?\u00a0\nIn regards the \u201cgated community\u201d comment and talking about how you interact with the greater neighborhood, I'm curious to know how you\u2019ve navigated this and what your outwardly facing presence is like both in terms of your activity and the neighborhoods perception of your community.\u00a0 If you work with local government\/neighborhood councils, is this something you do out of necessity, as something that sees it as a tool but not a goal or does that participation have value to you in and of itself? I ask because we've gotten involved with local government at times, but we see it as purely strategic, we won't do anything with them that would require some kind of compromise because ultimately we are interested in autonomy from all forms of governance. We think of our outward facing projects as building a territory. In\u00a0a place like nyc where creating one\u00a0large place where many people can live together and actually spatially put their lives in common is not really possible, we have formed a network that is concentrated in a neighborhood but spreads across the whole city and connects with like minded hubs in the rest of the country. An important question we ask ourselves is how do we keep this open to all forms of life that would grow our power and we theirs. I would pose the same to your group, how do keep it from becoming an isolated, if enviable situation, which is not merely its own ends?\u00a0 Would love to know if your model has the intention to put itself forth as a form that could be replicable, maybe it alreay\u00a0does? If you have ways that you formally share your experiences with other groups so they might learn and begin to try these things for themselves in their particular regions? Would love to know more about any or\u00a0all of these things.\n\u00a0\n","comment_id":"24493","post_id":"6756","user_id":"8896","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 20:05","group_id":"0"}},{"node":{"title":"no enemies be fully inclusive","content":"\nmy friend, your peoject edvelop in really hard area and time. thanks you are doing it!\nyour peoject has a strong identity. it shows values. You agree with me that not everybody agrees on thos values and practises. it will come a point when (if the project arrive to a relevant size and numbers) you will be in signirficant touch with interests, groups, organizations...that let's say, have a more traditional view.\none side is big conflict othe side seam to be the death.\nthird way, try to include what you do with what others do, with the time things and realtionship changes and if it good and betetr, your stile will modify their ones...without conflincts...\n","comment_id":"24489","post_id":"6747","user_id":"458","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 13:24","group_id":"0"}},{"node":{"title":"i would like to give you a","content":"\ni would like to give you a reference of soemthing big which lasted for many decades and had a solid scientific background and support. it is much differnet from your project but in some way it was aimed at showing and trating mind problematic people (sorry for my english) to a different open normal way:\na big area (ex psichiatric hospital) transformed into a living community with srvices and cultural events partially manged by people which woudl ahve been reclused.\nhttp:\/\/www.olinda.org\/cittaolinda\/paolo-pini\n\u00a0\ngoogle should help in putting into english\n","comment_id":"24488","post_id":"6510","user_id":"458","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 13:20","group_id":"0"}},{"node":{"title":"social ecosystem","content":"\nmy two cents to a great thinker...\nby profession I\u00a0deal both with institutions and corporations and, as a citizen, with society and all the issues. each of this world have needs and questions but also resources but, despite rhetoric or good will, they just negotiate on few elements (budgets, regulations..) as counterparts. 2 by 2. if we mange to make the \"system\" work differently we would easily gain - low costs - a much better impact and effect ..helping the social brain to work in a more complex way, which is not harder.\nwith this open care project we try to do something like that, making several forces co-operate and\u2026 if I \u00a0can sponsor a bit my part...having housing at the center (also with a good platform) can aggregate actions towards families networks as the center of policies, buildings, peer to peer care, local micro welfare we can enhance a social innovation\n\u00a0\n\u00a0\n","comment_id":"24487","post_id":"6258","user_id":"458","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 13:09","group_id":"0"}},{"node":{"title":"I understand","content":"\nWhat you say makes complete sense: at the end of the day you have a major crisis and not enough professionals anyway to deal with it. So, large mobilization doing suboptimal work is still better than the alternative of not helping or having enough help.\n@Franca Locati mentioned something I couldn't forget: she says you can sometimes\u00a0help someone too much. She was\u00a0refering to the way organisations work in providing services for newcomers. You two\u00a0should definitely connect, Franca worked for quite some time in the Italian system of refugee reception, for\u00a0the City of Milano, and managed to set up a platform for connecting a lot of\u00a0language teaching organisations around to make a more coherent service to the people needing it.\n","comment_id":"24486","post_id":"6729","user_id":"32","parent_comment_id":"24436","creation_date":"Friday, September 16, 2016 - 13:07","group_id":"0"}},{"node":{"title":"agrre and some additional points","content":"\nIn my experience (and sociological studies) i reach out to similar conclusions as yours adding some more\n1. digital helps a lot but not enough\u00a0as the famous book of sherry turkle descibes (we are together and alone) we need also\na) training and learning how to take the good out of digital\nb) phisical proximity and real realtionship\nc) digital can be intersting to share learnings and expereine and communicate with somebody far away, to discover new words...similar and intersting to you (this is not facebook, this is something that includes people willing to share interesting relationship adn prctises)\n2. so shared spaces in addition to private ones (co-living) can be a solution to some of these issues\n3. but you also underline that housing is not a standard, that needs are different so \"offer\" should be personalised by family\/groups by size, lifestile and so on. but you cant expect that normal real estate will ever produce anything like that if not stimulated properly...it sounds less profitable...\n\u00a0\n","comment_id":"24484","post_id":"6762","user_id":"458","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 12:40","group_id":"0"}},{"node":{"title":"Great post","content":"\n... and great video (Nadia showed it to me). I am impressed, and looking forward to get to know you better.\u00a0\n(Adding\u00a0this post to the opencare community group)\n","comment_id":"24483","post_id":"6752","user_id":"34","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 12:30","group_id":"5954"}},{"node":{"title":"Great post","content":"\n... and great video (Nadia showed it to me). I am impressed, and looking forward to get to know you better.\u00a0\n(Adding\u00a0this post to the opencare community group)\n","comment_id":"24483","post_id":"6752","user_id":"34","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 12:30","group_id":"5954"}},{"node":{"title":"Teaching each other how to respond","content":"Wow, @Aravella Salonikidou , what a story. My favourite part, however, is this:\n\nAt the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can \"play\" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises.\n\nIn the language we use here in Edgeryders, you are working on a community and documentation for it to operate on common knowledge. There are also opencare's main elements. This is the community equivalent of what venture capitalists call \"scaling\". You extend your reach, but without large money investment and unwieldy hierarchies.\u00a0\n\nMaybe someone's already asked, but... there is a chance we might help you get funding for your initiative (if that's what you need). We are working on a sort of collective proposal, where the proponent is not just us, but a whole \"smart swarm\" of grassroots initiatives like yours. More information is here.\u00a0\n","comment_id":"24482","post_id":"6729","user_id":"34","parent_comment_id":"24436","creation_date":"Friday, September 16, 2016 - 12:28","group_id":"0"}},{"node":{"title":"thjey are rebranding, re","content":"\nthjey are rebranding, re shaping strategy and muc more things..i deal with them for work purposes...but the chance here is get support of expereinces (good and bad) from families who knows what can mean to live like this without a religous\/political\/frienship\u00a0previous shared background.\ncompanies or big institutions can probaly leverage on stronge assessts for the real estate side but usually those managers have no idea of what living together can be in this way.\u00a0\nexternal supervisor or facilitators can be one option but sure also they like of direct experience, rural communities or scout or this kind of experience has less chances to be useful to enhance a spread out co-living (and maybe also co-working projects)\u00a0\u00a0\u00a0\n","comment_id":"24480","post_id":"6756","user_id":"458","parent_comment_id":"24453","creation_date":"Friday, September 16, 2016 - 12:22","group_id":"0"}},{"node":{"title":"we are informa group","content":"\ncassa depositi e prestiti operate usually on big projects 8its the finacial side of the government) together with fondazione cariplo.\n\u00a0\nwe are a group of family living together...not suc support...\n","comment_id":"24479","post_id":"6756","user_id":"458","parent_comment_id":"24448","creation_date":"Friday, September 16, 2016 - 12:18","group_id":"0"}},{"node":{"title":"Collaboration idea","content":"\nHi @ybe. It's a long post now so excuseme if I've skimmed too much. As @Alexander Shumsky posted the WeHandU\u00a0we were talking about the importance of psycological aspects of assistive technology. My experience is that people having sustained a stroke, spinal cord injury or living with MS have a need to talk about it. I's not what you intend by trauma, but I think it could be interesting include your expertice in a 360* service.\nWhat do you think?\n","comment_id":"24476","post_id":"6746","user_id":"8837","parent_comment_id":"0","creation_date":"Friday, September 16, 2016 - 09:37","group_id":"0"}},{"node":{"title":"A good idea!","content":"\n@Village-Psy it's a good idea but suitable for non stop groups and for those who have the luxury -I should say- to spend time for themselves. Here in Greece we have too much pressure anyway because of economical crisis. Most of the people who helped in my project they used to respond when I was calling for something (help, car, food, clothes etc) and then they were disappearing back to their lives and jobs. Anyway, now we are going to prepare a special place for meetings, so I thing we'll have the chance to care about us better and having fun as you suggest.\nThank you!\n","comment_id":"24470","post_id":"6729","user_id":"8957","parent_comment_id":"0","creation_date":"Thursday, September 15, 2016 - 22:26","group_id":"0"}},{"node":{"title":"@ybe thank you!","content":"\nI'll be back soon!\n","comment_id":"24469","post_id":"6729","user_id":"8957","parent_comment_id":"24434","creation_date":"Thursday, September 15, 2016 - 21:57","group_id":"0"}},{"node":{"title":"Hello and welcome @ybe.","content":"\nHello and welcome @ybe. Thanks for sharing your story.\nI know for certain that your experience and skills would be really useful to the volunteer organisations working down at the Calais refugee camp.\nMany volunteers have been working out there for the last year and there is a real need for access to professional mental health care.\u00a0\nIt will be required even more when the French Authorities start their planned clearance of the camp. At the moment we do not know when this will happen. But the volunteers current support nearly 10000 refugees on the camp and will probably put their lives on the line to help protect the refugees and their things during the eviction. It will certainly be highly emotional and very fraught.\n","comment_id":"24454","post_id":"6746","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, September 15, 2016 - 18:36","group_id":"0"}},{"node":{"title":"Many lessons learned","content":"\nI have known about this project for\u00a0years (I have even visited!), and\u00a0really like the way you guys seem to have adjusted and improved your ways of living together. My own co-living experiment is much smaller, and much younger than yours... there is a lot to learn here.\u00a0\nI just re-read The Book of Community\u00a0by @lasindias (also a long-lasting co-living), and found it very rich in insights. Available for free in Spanish and English (can't find the link to the English version at the moment, but I have it).\u00a0\nCassa depositi e prestiti has a very large social-co-housing scheme on the road. We discussed getting involved with them, but they are being quite slow in making a decision. :-)\n","comment_id":"24453","post_id":"6756","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, September 15, 2016 - 18:34","group_id":"0"}},{"node":{"title":"Wonderful story","content":"\nHi Orangehouse,\nThis sounds like a fantastic project. Congratualtions on your initiative and making it all work out so well.\u00a0It's great to hear a positive story where people are learning to integrate and create a new life out of a difficult situation.\nThere are certainly lessons that could be learnt from your experiences. I hope that i can share some of them with the volunteer teams that work in Calais. A project like yours in Calais would be a real start to help allieviate the problems between the local residents and the refugees on the Camp.\nI'd love to learn more about your process and they way you initially reached out to the refugees. How did you get them to trust you and your service? Have you had any scary moments?\n\u00a0\nAlex\n","comment_id":"24452","post_id":"6754","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, September 15, 2016 - 18:28","group_id":"0"}},{"node":{"title":"I recognise this story!","content":"\nWow @Simonedb it's been too long! I remember this experiment from back in the days when you shared on the first Edgeryders platform.\nAlberto was telling me some time ago about a social housing project in Italy (maybe Milano?) where a complex of buildings is rented to poor families, and\u00a0one of the units in each building is rented to the \"community manager\" tasked with working on social ties between people. Not sure about details, but it seems it's financed by Casa Depositi e Prestiti.\u00a0Does your project have anything to do with it\u00a0or better yet: do you see your project\u00a0coming to influence social policies in Italy? It seems it's 8 years along the line and you guys seem to have great results to show as to what the future looks like.\n","comment_id":"24448","post_id":"6756","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, September 15, 2016 - 15:04","group_id":"0"}},{"node":{"title":"Sanitation ","content":"\nNice work @breathinggame, It's really a good revolution therapy treatment for lungs and chest weakness . I'm sure that is not only those who have chest disease but also those who are in good condition. It's really needs to tell that it's a personal device. Is not necessary to tell that kids are curious and they can bring trouble sometime.\nIs there any level for \u00a0any step of lungs illness? \u00a0And is that need any assistance to check the evolution of the patient?\u00a0\n","comment_id":"24442","post_id":"6728","user_id":"8857","parent_comment_id":"0","creation_date":"Thursday, September 15, 2016 - 12:32","group_id":"0"}},{"node":{"title":"@Noemi The situation is not","content":"\n@Noemi The situation is not so simple as it seems. In Thessaloniki for example there were more than 50 different solidarity groups and thousands of individual people that activated to help the refugees in a way. But it was too much. Thousands of naked and hungry people. No time for planning. It was impossible to organise something that could work seriously. Only the goverment could\u00a0 make a general call and most of the NGO's worked separately. We 've tried workshops through libraries, marathon brainstorming for mobile apps, mapping groups and needs etc but nothing in a professional way or with cooperation with expertise.\u00a0\nAt the moment I'm focus to create a solidarity net that can be prepared for crises. In this network everybody could have a role that can \"play\" in case of emergency. Also a survival handbook with forgotten or unknown tips and tricks that can solve problems in such crises. Especially for clothing, I 'm trying to solve the problem with an idea called \"smart boxes\" (difficult to explain at the moment). I don' t know if there's something out there that can help. This is why I'm here...\n","comment_id":"24436","post_id":"6729","user_id":"8957","parent_comment_id":"24406","creation_date":"Wednesday, September 14, 2016 - 23:13","group_id":"0"}},{"node":{"title":"here's the link again","content":"\nwww.traumatour.eu\n","comment_id":"24434","post_id":"6729","user_id":"8959","parent_comment_id":"24433","creation_date":"Wednesday, September 14, 2016 - 22:04","group_id":"0"}},{"node":{"title":"@ybe thank you ","content":"\n@ybe thank you for your interest! I' d like to know more about your work but there something wrong with the link. Could you repeat it?\n\u00a0\n","comment_id":"24433","post_id":"6729","user_id":"8957","parent_comment_id":"24395","creation_date":"Wednesday, September 14, 2016 - 21:59","group_id":"0"}},{"node":{"title":"\u00a0","content":"\n\u00a0\nIt sounds like you have been\u00a0tremendously active\u00a0\u00a0in \u00a0the refugee crisis over the past year\u00a0\u00a0and \u00a0it is good to hear that although the summer interval has meant that many of the volunteers have disappeared, you are not being discouraged, but rather you are thinking of new ways to keep the venture going.\nThe idea of an inventory of human assets\u00a0 where everyone can contribute reminds\u00a0us \u00a0of how small communities function best.It\u00a0sounds like\u00a0this\u00a0\u00a0 year you\u00a0 found a pool of\u00a0 competent people with various skills to tackle quick and practical solutions for the vulnerable population you were handling. Now that\u00a0the refugee crisis is no longer so\u00a0much in the forefront\u00a0\u00a0fewer people are helping out voluntarily and as you say there is a crisis in the refugee care area.\u00a0\nMaybe one thing to consider is that\u00a0volunteers also need to\u00a0feel at some point \u00a0'taken care of ' ,so\u00a0providing \u00a0the helpers with some sort of\u00a0'help' of a different kind than the one they are offering,\u00a0can be very beneficial in using them longterm.\u00a0From our experience from village-psy this summer the dynamic that is created in a small community\u00a0is huge when all \u00a0the parties involved feel that they are taken care of. There are many ways to help the helpers.\u00a0One\u00a0 that could work could be finding other volunteers to do some art\/music or dramatherapy workshops\u00a0so that\u00a0 people offering their practical \u00a0skills in the venture can get something in return that is challenging, stimulating and\u00a0in a different way\u00a0\u00a0supportive \u00a0to them.\u00a0\u00a0This is just a suggestion, i am sure there will be many more...\nGood luck with your next steps!\n\u00a0\n","comment_id":"24429","post_id":"6729","user_id":"8947","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 17:26","group_id":"0"}},{"node":{"title":"Whoa.","content":"\nOne reads about NGOs becoming institutions and not in a good way.\u00a0This is very hard to digest in the real world, since your\u00a0mission is supposedly to fix\u00a0a problem. Sorry to hear about that unfortunate experience, we will be on the lookout for other options.\n","comment_id":"24423","post_id":"6746","user_id":"32","parent_comment_id":"24415","creation_date":"Wednesday, September 14, 2016 - 12:53","group_id":"0"}},{"node":{"title":"indeed a good plan needs a map","content":"\nThx @Andra.B for your suggestion. I am indeed planning to do that in the next few weeks. I'll keep you posted :-)\nPs Where are you living, maybe I can come along and meet you?\n","comment_id":"24422","post_id":"6746","user_id":"8959","parent_comment_id":"24417","creation_date":"Wednesday, September 14, 2016 - 12:48","group_id":"0"}},{"node":{"title":"How can we help?","content":"\nHi @KANNABIO, welcome on board! I know hemp production is back and on the rise in Romania too,\u00a0after prohibitive regulations following the fall of communism. As far as I know it is somewhat subsidized too.\nHave you attended the OPENandChange workshop in Thessaloniki? With Edgeryders we\u00a0are trying\u00a0to gather tens of projects working on community care, broadly understood, to apply for\u00a0funding.\u00a0If you're interested to be part of this, we are building partnerships until Sept 20th: http:\/\/openandchange.care\nIf there's anything else we can do to help your initiative, let us know!\n\u00a0\n","comment_id":"24420","post_id":"6751","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 12:35","group_id":"0"}},{"node":{"title":"environment we create crucial in mental, psychological health ","content":"\nTopio sounds like a very interesting project with a lot of potential. Cities in Greece need to be 'creatively'\u00a0taken care of'\u00a0and\u00a0become more humaine\u00a0and grassroots activities such as yours targeted to raise awareness in\u00a0the new generation can pass on crucial messages about what it means to care about the space we live in.\nWe at village psy are also interested in the use of space ,landscape and natural surroundings\u00a0\u00a0and how they can\u00a0can influence and\u00a0improve physical, mental and psychological health . Our aim though is the exact opposite in a way, in other words to draw adult\u00a0urban dwellers , out of city centers\u00a0and bring them for a few days back to their 'natural surroundings , a village maybe somewhat similar to the one their ancestors came from '.\nThe idea is taking psychotherapy outdoors In locations outside therapists offices and conference rooms where they can benefit from the small community( similar to a city neighborhood) and the natural environment itself.\nTherapeutic perspectives offered in village psy \u00a0,\u00a0\u00a0such as music therapy, Dramatherapy and Playtherapy \u00a0point to the youthfulness that is so crucial in your own work , which,\u00a0as adults , we tend to loose.\nReading about \u00a0how you got started , \u00a0the good spirit of synergy in your collaboration \u00a0based on trust and respect reminds us a lot of our own philosophy....this we strongly believe is the way forward. Keep up the good work.\n","comment_id":"24418","post_id":"6710","user_id":"8947","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 12:19","group_id":"0"}},{"node":{"title":"about village psy","content":"\nthank you for the useful info\u00a0you gave us about a similar project in Ireland.\nConcerning our own village psy project, it took place in a small village in central Greece where\u00a0professionals from the field of psychotherapy,students and people interested in their self development joined together\u00a0for ten\u00a0days.\nDuring this time -some people joined for\u00a0\u00a0five\u00a0days,\u00a0others for the whole period,- in the picturesque village of pinakates, \u00a0in its\u00a0courtyards ,the old primary school, open spaces in nature,\u00a0participants attended experiential workshops in the mornings and informal lectures in \u00a0the evenings.\nThe spaces worked even better than we had envisioned , as they provided true havens for working with such a\u00a0serious topic as trauma. The combination of the\u00a0art therapies ,such as music and drama, with more talking,\u00a0person centered ,existential cures-psychotherapies worked really well as they ended up\u00a0serving\u00a0complimentarily.\nOne day , the one dedicated to therapeutic horse riding,\u00a0participants had\u00a0the opportunity to actually ride \u00a0horses and get in touch with the very special relationship on which this type of therapy is based.\nOverall, during the ten days ,participants came and went ,yet\u00a0still managed through the great dynamic that developed and spread , to\u00a0\u00a0form a\u00a0small but very powerful community which\u00a0worked in depth,\u00a0made\u00a0strong bonds and parted enthusiastic and full of experiences.\n","comment_id":"24413","post_id":"6705","user_id":"8947","parent_comment_id":"24243","creation_date":"Wednesday, September 14, 2016 - 11:21","group_id":"0"}},{"node":{"title":"Connecting with local entities en route","content":"\nDear @ybe - it's great to hear of your initiative!\u00a0Following up on Noemi's suggestion - I agree that local organizations\/groups\/individuals on your trail could also be insightful in identifying groups in need of your services, offer insights on any cultural differences, or\u00a0support you in a number of other ways (including in overcoming language barriers if existant). I was wondering if you have considered mapping your desired\/planned route to facilitate connecting with local groups\/individuals before you arrive - maybe a very basic online map? I think it could facilitate reaching out to people on the route and could have potential as a planning tool.\n\u00a0\n","comment_id":"24417","post_id":"6746","user_id":"6455","parent_comment_id":"24409","creation_date":"Wednesday, September 14, 2016 - 11:13","group_id":"0"}},{"node":{"title":"I am another you, you are another me","content":"\n@noemie, thx for thinking along with me.\nIn my experience (I work in a refugee center in Belgium) there are cultural differences, of course. But aside these differences, we all share humanity and the fact that, in some way or another, we all are familiar with pain, with trauma. Not sharing the same language can be difficult too, but I've helped many people talking in a language that is neither their not my mother language. Also, communication is larger than words: expression, visual support, eye contact and even touch can be means of understanding and helping too. When their is no common language, I work with a translator sometimes too.\nAs for Medecins sans fronti\u00e8res, I applied for a position in the field - but was not accepted. Like many 'traditional' NGO's they have quite rigid and out-of-date conditions of admission - like requiring a master degree in psychology. I have a master in philosophy, 4 years of study in psychotherapy and a specialisation in psychotraumatalogy plus 10 years of experience. Nevertheless I do not meet the 'official' requirements. The recognition of psychotherapy as a valid profession is a complex issue and one that is colonized in Belgium by the medical professions, which is the mean reason why people like me, highly skilled psychotherapists,\u00a0 are not recognized as such. It is a pity that organisations like MsF follow mainstream politics regarding this issue.\n","comment_id":"24415","post_id":"6746","user_id":"8959","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 11:03","group_id":"0"}},{"node":{"title":"Got advice for this interesting mental health initiative? ","content":"\n@Omri Kaufmann @Pauline @wishcrys @Andra_Pop and come to think of it even @Andra.B :p might be\u00a0into this.\nSay hello to\u00a0this wandering therapist who is doing traumatherapy on wheels and going on a tour in Europe just now!\n","comment_id":"24414","post_id":"6510","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 10:47","group_id":"0"}},{"node":{"title":"Ah, I see","content":"\nAfter all, choosing to make an investment in a grant application is different from making a sale, and requires different resource allocation and a strech\u00a0anyhow - so of course choices at each time\u00a0matter whether or not you are looking to position yourself or not.\n","comment_id":"24412","post_id":"6709","user_id":"32","parent_comment_id":"24410","creation_date":"Wednesday, September 14, 2016 - 10:36","group_id":"0"}},{"node":{"title":"Perhaps I phrased it wrong","content":"\nHey Noemi! Thanks for your reply. We don't feel the need to position ourselves so clearly. To the contrary: we would like to cooperate with as many\u00a0diverse\u00a0actors as possible. Being anti anything is what we try to avoid. We'd rather build something better together than criticize the old.\nHowever, I've noticed that in our field, making choices of who you work with and what you do, positions yourself clearly on\u00a0a polarized spectrum no matter what. It's not always the case surely, but something that is there nevertheless.\nThanks for sharing your experience. You're right; if what we do is in allignment with the values then the results will speak for themselves. This dilemma of choosing may well just be fear of shutting certain doors. Other doors will open and as long as our moral compass works, we'll get to where we want to be\u00a0:)\n","comment_id":"24410","post_id":"6709","user_id":"8889","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 10:06","group_id":"0"}},{"node":{"title":"Hi there!","content":"\nHi there!\nThank you for your message.Your work and the Trauma Tour bus concept sound\u00a0very interesting \u00a0indeed.Unfortunately to answer your questions\u00a0\u00a0village psy runs in the summer and specifically in the month of August so that won't be till next year. Also\u00a0our\u00a0\u00a0invited speakers all join in on a voluntary basis .\nWe wish you the best \u00a0of luck with your voluntary work with refugees in Greece and when you do come to our country , do get in touch info@village-psy.gr. It\u00a0will be nice to meet you in person and exchange experiences .\n","comment_id":"24408","post_id":"6705","user_id":"8947","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 10:04","group_id":"0"}},{"node":{"title":"Are there cultural differences to account for?","content":"\n@ybe I'm happy to meet you, my name is Noemi and while I haven't dealt with the issue at all, maybe this is silly to ask: but\u00a0I'm wondering if people in different places have own preferences to express themselves, or if language can be an obstacle?\nHave you tried getting in touch with\u00a0M\u00e9decins Sans Fronti\u00e8res\u00a0for a collaboration? I was reading about them offering psychological first aid, but apparently there are not nearly enough people on the ground.\n","comment_id":"24409","post_id":"6746","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 10:00","group_id":"0"}},{"node":{"title":"Hang in there","content":"\n@Aravella Salonikidou very interesting to read you, over the past year indeed we in other parts of the world are reading a lot of Greek groups' efforts to respond to the refugee crisis.. all very vocal.\u00a0I wonder:\u00a0with so many diverse community efforts,\u00a0haven't there been any events\u00a0where active\u00a0people can do the kind of mapping which you mention, where they can say what is needed from their side and try to collaborate more?\nI realise it's a lot to expect though, I imagine\u00a0coping\u00a0with an unpredictable\u00a0situation already takes a lot of effort.\u00a0\nI remember @Alex Levene writing about the camp in Calais and the fact that coordination happens through medium to long term volunteers. Could they\u00a0be the kind of primary\u00a0asset that can help do inventoring, mapping, research for this stage you're at?\n","comment_id":"24406","post_id":"6729","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, September 14, 2016 - 08:47","group_id":"0"}},{"node":{"title":"Hello Pavlos, thx. Yes I","content":"\nHello Pavlos, thx. Yes I already read their story and and also the one of Aravella Salonikidou, I left a message for both of them and am waiting for their response. Looks like in Greece a lot of people are doing good work :-)\n\u00a0\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"24405","post_id":"6746","user_id":"8959","parent_comment_id":"24403","creation_date":"Wednesday, September 14, 2016 - 08:25","group_id":"0"}},{"node":{"title":"Subscribed!","content":"\nAnd look forward to the videos. It seems to me that gamejams and all the events where you are present are most useful for getting\u00a0support. With anything involving technology the easiest is just to show how it works, so even inviting authorities\/\u00a0potential funders to gamejams might do the trick.\n\u00a0\n","comment_id":"24404","post_id":"6728","user_id":"32","parent_comment_id":"24334","creation_date":"Wednesday, September 14, 2016 - 08:21","group_id":"0"}},{"node":{"title":"Connecting you with @Village-Psy","content":"\nHi @ybe, have you read the story of @Village-Psy and the work they do with education on healing\u00a0trauma on Mt. Pelion, in Greece?\nhttps:\/\/edgeryders.eu\/en\/village-psy-encounters-in-psychotherapy\n","comment_id":"24403","post_id":"6746","user_id":"8851","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 22:40","group_id":"0"}},{"node":{"title":"Taken up 1 and 2","content":"\nI can also do 3 and 4 later in the week once more tweets are gathered.\nThe chop and clicktotweet\u00a0tools are great,\u00a0you don't know how much I've looked to add Tweet this buttons for past events and didn't find a tool or quick code!\nThe problem with the chat room is that it doesn't seem to collect all tweets, update fast enough and show RTs. Let a few of us use it these days to test it.\n\u00a0\n","comment_id":"24402","post_id":"6698","user_id":"32","parent_comment_id":"24399","creation_date":"Tuesday, September 13, 2016 - 13:50","group_id":"5954"}},{"node":{"title":"Taken up 1 and 2","content":"\nI can also do 3 and 4 later in the week once more tweets are gathered.\nThe chop and clicktotweet\u00a0tools are great,\u00a0you don't know how much I've looked to add Tweet this buttons for past events and didn't find a tool or quick code!\nThe problem with the chat room is that it doesn't seem to collect all tweets, update fast enough and show RTs. Let a few of us use it these days to test it.\n\u00a0\n","comment_id":"24402","post_id":"6698","user_id":"32","parent_comment_id":"24399","creation_date":"Tuesday, September 13, 2016 - 13:50","group_id":"5954"}},{"node":{"title":"Taken up 1 and 2","content":"\nI can also do 3 and 4 later in the week once more tweets are gathered.\nThe chop and clicktotweet\u00a0tools are great,\u00a0you don't know how much I've looked to add Tweet this buttons for past events and didn't find a tool or quick code!\nThe problem with the chat room is that it doesn't seem to collect all tweets, update fast enough and show RTs. Let a few of us use it these days to test it.\n\u00a0\n","comment_id":"24402","post_id":"6698","user_id":"32","parent_comment_id":"24399","creation_date":"Tuesday, September 13, 2016 - 13:50","group_id":"5954"}},{"node":{"title":"Taken up 1 and 2","content":"\nI can also do 3 and 4 later in the week once more tweets are gathered.\nThe chop and clicktotweet\u00a0tools are great,\u00a0you don't know how much I've looked to add Tweet this buttons for past events and didn't find a tool or quick code!\nThe problem with the chat room is that it doesn't seem to collect all tweets, update fast enough and show RTs. Let a few of us use it these days to test it.\n\u00a0\n","comment_id":"24402","post_id":"6698","user_id":"32","parent_comment_id":"24399","creation_date":"Tuesday, September 13, 2016 - 13:50","group_id":"5954"}},{"node":{"title":"Taken up 1 and 2","content":"\nI can also do 3 and 4 later in the week once more tweets are gathered.\nThe chop and clicktotweet\u00a0tools are great,\u00a0you don't know how much I've looked to add Tweet this buttons for past events and didn't find a tool or quick code!\nThe problem with the chat room is that it doesn't seem to collect all tweets, update fast enough and show RTs. Let a few of us use it these days to test it.\n\u00a0\n","comment_id":"24402","post_id":"6698","user_id":"32","parent_comment_id":"24399","creation_date":"Tuesday, September 13, 2016 - 13:50","group_id":"5954"}},{"node":{"title":"Tweets: text broken down + favs","content":"\nWelcome to #OPENandChange Care: An invitation to a\u00a0shared 100 mill$\u00a0bid to fix health and social care.\n#OPENandChange: is it here? is it now? how does it affect me? Tune in for 1hr and tweet it\u00a0to meet the future.\u00a0\nUse #openandchange to join a massive online live conversation taking place now and led by @edgeryders community members\n.@macfound has decided to deliver give a mighty push to fixing the world\u2019s most hairy, unfixable problems -\u00a0#100andChange !\u00a0\u00a0#openandchange\n.@edgeryders and an interconnected web of practitioners from all over are responding with one proposal: http:\/\/openandchange.care\u00a0#100andChange\n#OPENandChange aims to\u00a0PROVIDE PARTICIPATORY, OPEN, SAFE AND ACCOUNTABLE HEALTH AND SOCIAL CARE FOR ALL\u00a0#100andChange\u00a0\u00a0\n...[add teasing\u00a0questions here]\nDid you know\u00a0per capita health care expenditure grows much faster than GDP? Health systems everywhere are under strain\u00a0https:\/\/edgeryders.eu\/sites\/default\/files\/user-Alberto\/Health_care_expenditure.gif #OPENandChange\n.@edgeryders @OpenInsulin @concrn @op3ncare @VeloM2Bxl @nextlearning are taking on the challenge of fixing care fully on! #OPENandChange #100andChange\nWe do it by engaging with projects we know and\u00a0dont yet know. This is an offer for partnering up, you're in time!\u00a0http:\/\/OpenandChange.care\u00a0#OPEandChange\u00a0\nOh. And we will break the competitive logic of grant\u00a0funding in the meantime\u00a0buff.ly\/2cxjwUd #OPENandChange #100andChange\nWe think we will win. Why? #openandchange #100andChange\nWhy\u00a0#OPENandchange?\u00a0Funding one organisation means\u00a0empowering a small group at the top. How about a network of orgs and\u00a0movements?\u00a0#100andChange\nWhy #OPENandChange?\u00a0Diversity trumps ability:\u00a0large swarm of initiatives will be vastly more diverse than an organisation\u00a0#100andChange\nWhy #OPENandChange?\u00a0Decentralized networks learn fast because they rely on knowledge sharing and documentation #100andChange\nWhy #OPENandChange? Sociality in access to knowledge and teaching produces better technology than individual smarts\u00a0#100andChange\nIn Edgeryders alone\u00a0we have 5,300 documented\u00a0sharing knowledge relationships. Advanced analytics enable meaningful data extraction\u00a0#openandchange #100andChange\nWe are already present and mobilized\u00a0in over 30 countries\u00a0#openandchange #100andChange\nWhy is fixing broken social and health-care systems a task for a massive no of people and projects?\u00a0#openandchange #100andChange\nIt is where we are all experts:\u00a0almost every human has been, at some point, both a care giver and receiver\u00a0#openandchange #100andChange\nFor #100andChange competition we are not proposing new ideas: Inspiring projects are already showing that communities are able to deliver care. Yet they are struggling\u00a0#openandchange\nNow we will introduce stories and invite you to connect directly with protagonists. We are one click away and will be so for #OPENandChange #100andChange\n...[fav tweets about projects here - suggest being explicit about location so that we show how worldly we are!\n\u00a0\nOpen\u00a0Insulin\u00a0project!\u00a0#3Dprinter\u00a0#proteins\u00a0#biohacking\u00a0#diabetes\u00a0#solution\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2bQhUUS\u00a0https:\/\/t.co\/xjVGNALo93\nCalais\u00a0Jungle!\u00a0#diy\u00a0#Dunkirk\u00a0#volunteers\u00a0#refugees\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2cwwlKVhttps:\/\/t.co\/DzbvuHHrJh\nDoucheFLUX in Brussels | This simple thing will fix once and for all problem with access to showers http:\/\/bit.ly\/2cnhnHu\u00a0#OPENandChange\u00a0#100andChange\n...\n[maybe one person can tweet these one hour\u00a0in advance?]\n@concrn are\u00a0joining #OPENandChange and we'd invite them to tweet why?\n@Prinzess are joining\u00a0#OPENandChange. Tell us your story and why?\n...\nHow is #OPENandChange going to tie together\u00a0these\u00a0crazy weird wonderful approaches? #100andChange\nSince beginning 2016 we have done Step 1:\u00a0SENSING what is out there doing ambitious work on delivering better care #openandchange #100andChange\nEnding 2016 we are moving to Step 2: SENSE-MAKING through large ethnographic and #SNA study with @op3ncare #OPENandChange\u00a0\nBy winning #100andChange competition we want to move a level up: SCALING to help projects advance through collaboration\u00a0#openandchange #100andChange\nTo show what we preach we are making the proposal draft for @Macfound available and as open as it gets\u00a0buff.ly\/2chVO9O #OPENandChange\nThanks to @@@@@@@@@\nThanks to @@@@@@@@@@\n","comment_id":"24401","post_id":"6698","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 13:42","group_id":"5954"}},{"node":{"title":"Tweets: text broken down + favs","content":"\nWelcome to #OPENandChange Care: An invitation to a\u00a0shared 100 mill$\u00a0bid to fix health and social care.\n#OPENandChange: is it here? is it now? how does it affect me? Tune in for 1hr and tweet it\u00a0to meet the future.\u00a0\nUse #openandchange to join a massive online live conversation taking place now and led by @edgeryders community members\n.@macfound has decided to deliver give a mighty push to fixing the world\u2019s most hairy, unfixable problems -\u00a0#100andChange !\u00a0\u00a0#openandchange\n.@edgeryders and an interconnected web of practitioners from all over are responding with one proposal: http:\/\/openandchange.care\u00a0#100andChange\n#OPENandChange aims to\u00a0PROVIDE PARTICIPATORY, OPEN, SAFE AND ACCOUNTABLE HEALTH AND SOCIAL CARE FOR ALL\u00a0#100andChange\u00a0\u00a0\n...[add teasing\u00a0questions here]\nDid you know\u00a0per capita health care expenditure grows much faster than GDP? Health systems everywhere are under strain\u00a0https:\/\/edgeryders.eu\/sites\/default\/files\/user-Alberto\/Health_care_expenditure.gif #OPENandChange\n.@edgeryders @OpenInsulin @concrn @op3ncare @VeloM2Bxl @nextlearning are taking on the challenge of fixing care fully on! #OPENandChange #100andChange\nWe do it by engaging with projects we know and\u00a0dont yet know. This is an offer for partnering up, you're in time!\u00a0http:\/\/OpenandChange.care\u00a0#OPEandChange\u00a0\nOh. And we will break the competitive logic of grant\u00a0funding in the meantime\u00a0buff.ly\/2cxjwUd #OPENandChange #100andChange\nWe think we will win. Why? #openandchange #100andChange\nWhy\u00a0#OPENandchange?\u00a0Funding one organisation means\u00a0empowering a small group at the top. How about a network of orgs and\u00a0movements?\u00a0#100andChange\nWhy #OPENandChange?\u00a0Diversity trumps ability:\u00a0large swarm of initiatives will be vastly more diverse than an organisation\u00a0#100andChange\nWhy #OPENandChange?\u00a0Decentralized networks learn fast because they rely on knowledge sharing and documentation #100andChange\nWhy #OPENandChange? Sociality in access to knowledge and teaching produces better technology than individual smarts\u00a0#100andChange\nIn Edgeryders alone\u00a0we have 5,300 documented\u00a0sharing knowledge relationships. Advanced analytics enable meaningful data extraction\u00a0#openandchange #100andChange\nWe are already present and mobilized\u00a0in over 30 countries\u00a0#openandchange #100andChange\nWhy is fixing broken social and health-care systems a task for a massive no of people and projects?\u00a0#openandchange #100andChange\nIt is where we are all experts:\u00a0almost every human has been, at some point, both a care giver and receiver\u00a0#openandchange #100andChange\nFor #100andChange competition we are not proposing new ideas: Inspiring projects are already showing that communities are able to deliver care. Yet they are struggling\u00a0#openandchange\nNow we will introduce stories and invite you to connect directly with protagonists. We are one click away and will be so for #OPENandChange #100andChange\n...[fav tweets about projects here - suggest being explicit about location so that we show how worldly we are!\n\u00a0\nOpen\u00a0Insulin\u00a0project!\u00a0#3Dprinter\u00a0#proteins\u00a0#biohacking\u00a0#diabetes\u00a0#solution\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2bQhUUS\u00a0https:\/\/t.co\/xjVGNALo93\nCalais\u00a0Jungle!\u00a0#diy\u00a0#Dunkirk\u00a0#volunteers\u00a0#refugees\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2cwwlKVhttps:\/\/t.co\/DzbvuHHrJh\nDoucheFLUX in Brussels | This simple thing will fix once and for all problem with access to showers http:\/\/bit.ly\/2cnhnHu\u00a0#OPENandChange\u00a0#100andChange\n...\n[maybe one person can tweet these one hour\u00a0in advance?]\n@concrn are\u00a0joining #OPENandChange and we'd invite them to tweet why?\n@Prinzess are joining\u00a0#OPENandChange. Tell us your story and why?\n...\nHow is #OPENandChange going to tie together\u00a0these\u00a0crazy weird wonderful approaches? #100andChange\nSince beginning 2016 we have done Step 1:\u00a0SENSING what is out there doing ambitious work on delivering better care #openandchange #100andChange\nEnding 2016 we are moving to Step 2: SENSE-MAKING through large ethnographic and #SNA study with @op3ncare #OPENandChange\u00a0\nBy winning #100andChange competition we want to move a level up: SCALING to help projects advance through collaboration\u00a0#openandchange #100andChange\nTo show what we preach we are making the proposal draft for @Macfound available and as open as it gets\u00a0buff.ly\/2chVO9O #OPENandChange\nThanks to @@@@@@@@@\nThanks to @@@@@@@@@@\n","comment_id":"24401","post_id":"6698","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 13:42","group_id":"5954"}},{"node":{"title":"Tweets: text broken down + favs","content":"\nWelcome to #OPENandChange Care: An invitation to a\u00a0shared 100 mill$\u00a0bid to fix health and social care.\n#OPENandChange: is it here? is it now? how does it affect me? Tune in for 1hr and tweet it\u00a0to meet the future.\u00a0\nUse #openandchange to join a massive online live conversation taking place now and led by @edgeryders community members\n.@macfound has decided to deliver give a mighty push to fixing the world\u2019s most hairy, unfixable problems -\u00a0#100andChange !\u00a0\u00a0#openandchange\n.@edgeryders and an interconnected web of practitioners from all over are responding with one proposal: http:\/\/openandchange.care\u00a0#100andChange\n#OPENandChange aims to\u00a0PROVIDE PARTICIPATORY, OPEN, SAFE AND ACCOUNTABLE HEALTH AND SOCIAL CARE FOR ALL\u00a0#100andChange\u00a0\u00a0\n...[add teasing\u00a0questions here]\nDid you know\u00a0per capita health care expenditure grows much faster than GDP? Health systems everywhere are under strain\u00a0https:\/\/edgeryders.eu\/sites\/default\/files\/user-Alberto\/Health_care_expenditure.gif #OPENandChange\n.@edgeryders @OpenInsulin @concrn @op3ncare @VeloM2Bxl @nextlearning are taking on the challenge of fixing care fully on! #OPENandChange #100andChange\nWe do it by engaging with projects we know and\u00a0dont yet know. This is an offer for partnering up, you're in time!\u00a0http:\/\/OpenandChange.care\u00a0#OPEandChange\u00a0\nOh. And we will break the competitive logic of grant\u00a0funding in the meantime\u00a0buff.ly\/2cxjwUd #OPENandChange #100andChange\nWe think we will win. Why? #openandchange #100andChange\nWhy\u00a0#OPENandchange?\u00a0Funding one organisation means\u00a0empowering a small group at the top. How about a network of orgs and\u00a0movements?\u00a0#100andChange\nWhy #OPENandChange?\u00a0Diversity trumps ability:\u00a0large swarm of initiatives will be vastly more diverse than an organisation\u00a0#100andChange\nWhy #OPENandChange?\u00a0Decentralized networks learn fast because they rely on knowledge sharing and documentation #100andChange\nWhy #OPENandChange? Sociality in access to knowledge and teaching produces better technology than individual smarts\u00a0#100andChange\nIn Edgeryders alone\u00a0we have 5,300 documented\u00a0sharing knowledge relationships. Advanced analytics enable meaningful data extraction\u00a0#openandchange #100andChange\nWe are already present and mobilized\u00a0in over 30 countries\u00a0#openandchange #100andChange\nWhy is fixing broken social and health-care systems a task for a massive no of people and projects?\u00a0#openandchange #100andChange\nIt is where we are all experts:\u00a0almost every human has been, at some point, both a care giver and receiver\u00a0#openandchange #100andChange\nFor #100andChange competition we are not proposing new ideas: Inspiring projects are already showing that communities are able to deliver care. Yet they are struggling\u00a0#openandchange\nNow we will introduce stories and invite you to connect directly with protagonists. We are one click away and will be so for #OPENandChange #100andChange\n...[fav tweets about projects here - suggest being explicit about location so that we show how worldly we are!\n\u00a0\nOpen\u00a0Insulin\u00a0project!\u00a0#3Dprinter\u00a0#proteins\u00a0#biohacking\u00a0#diabetes\u00a0#solution\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2bQhUUS\u00a0https:\/\/t.co\/xjVGNALo93\nCalais\u00a0Jungle!\u00a0#diy\u00a0#Dunkirk\u00a0#volunteers\u00a0#refugees\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2cwwlKVhttps:\/\/t.co\/DzbvuHHrJh\nDoucheFLUX in Brussels | This simple thing will fix once and for all problem with access to showers http:\/\/bit.ly\/2cnhnHu\u00a0#OPENandChange\u00a0#100andChange\n...\n[maybe one person can tweet these one hour\u00a0in advance?]\n@concrn are\u00a0joining #OPENandChange and we'd invite them to tweet why?\n@Prinzess are joining\u00a0#OPENandChange. Tell us your story and why?\n...\nHow is #OPENandChange going to tie together\u00a0these\u00a0crazy weird wonderful approaches? #100andChange\nSince beginning 2016 we have done Step 1:\u00a0SENSING what is out there doing ambitious work on delivering better care #openandchange #100andChange\nEnding 2016 we are moving to Step 2: SENSE-MAKING through large ethnographic and #SNA study with @op3ncare #OPENandChange\u00a0\nBy winning #100andChange competition we want to move a level up: SCALING to help projects advance through collaboration\u00a0#openandchange #100andChange\nTo show what we preach we are making the proposal draft for @Macfound available and as open as it gets\u00a0buff.ly\/2chVO9O #OPENandChange\nThanks to @@@@@@@@@\nThanks to @@@@@@@@@@\n","comment_id":"24401","post_id":"6698","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 13:42","group_id":"5954"}},{"node":{"title":"Tweets: text broken down + favs","content":"\nWelcome to #OPENandChange Care: An invitation to a\u00a0shared 100 mill$\u00a0bid to fix health and social care.\n#OPENandChange: is it here? is it now? how does it affect me? Tune in for 1hr and tweet it\u00a0to meet the future.\u00a0\nUse #openandchange to join a massive online live conversation taking place now and led by @edgeryders community members\n.@macfound has decided to deliver give a mighty push to fixing the world\u2019s most hairy, unfixable problems -\u00a0#100andChange !\u00a0\u00a0#openandchange\n.@edgeryders and an interconnected web of practitioners from all over are responding with one proposal: http:\/\/openandchange.care\u00a0#100andChange\n#OPENandChange aims to\u00a0PROVIDE PARTICIPATORY, OPEN, SAFE AND ACCOUNTABLE HEALTH AND SOCIAL CARE FOR ALL\u00a0#100andChange\u00a0\u00a0\n...[add teasing\u00a0questions here]\nDid you know\u00a0per capita health care expenditure grows much faster than GDP? Health systems everywhere are under strain\u00a0https:\/\/edgeryders.eu\/sites\/default\/files\/user-Alberto\/Health_care_expenditure.gif #OPENandChange\n.@edgeryders @OpenInsulin @concrn @op3ncare @VeloM2Bxl @nextlearning are taking on the challenge of fixing care fully on! #OPENandChange #100andChange\nWe do it by engaging with projects we know and\u00a0dont yet know. This is an offer for partnering up, you're in time!\u00a0http:\/\/OpenandChange.care\u00a0#OPEandChange\u00a0\nOh. And we will break the competitive logic of grant\u00a0funding in the meantime\u00a0buff.ly\/2cxjwUd #OPENandChange #100andChange\nWe think we will win. Why? #openandchange #100andChange\nWhy\u00a0#OPENandchange?\u00a0Funding one organisation means\u00a0empowering a small group at the top. How about a network of orgs and\u00a0movements?\u00a0#100andChange\nWhy #OPENandChange?\u00a0Diversity trumps ability:\u00a0large swarm of initiatives will be vastly more diverse than an organisation\u00a0#100andChange\nWhy #OPENandChange?\u00a0Decentralized networks learn fast because they rely on knowledge sharing and documentation #100andChange\nWhy #OPENandChange? Sociality in access to knowledge and teaching produces better technology than individual smarts\u00a0#100andChange\nIn Edgeryders alone\u00a0we have 5,300 documented\u00a0sharing knowledge relationships. Advanced analytics enable meaningful data extraction\u00a0#openandchange #100andChange\nWe are already present and mobilized\u00a0in over 30 countries\u00a0#openandchange #100andChange\nWhy is fixing broken social and health-care systems a task for a massive no of people and projects?\u00a0#openandchange #100andChange\nIt is where we are all experts:\u00a0almost every human has been, at some point, both a care giver and receiver\u00a0#openandchange #100andChange\nFor #100andChange competition we are not proposing new ideas: Inspiring projects are already showing that communities are able to deliver care. Yet they are struggling\u00a0#openandchange\nNow we will introduce stories and invite you to connect directly with protagonists. We are one click away and will be so for #OPENandChange #100andChange\n...[fav tweets about projects here - suggest being explicit about location so that we show how worldly we are!\n\u00a0\nOpen\u00a0Insulin\u00a0project!\u00a0#3Dprinter\u00a0#proteins\u00a0#biohacking\u00a0#diabetes\u00a0#solution\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2bQhUUS\u00a0https:\/\/t.co\/xjVGNALo93\nCalais\u00a0Jungle!\u00a0#diy\u00a0#Dunkirk\u00a0#volunteers\u00a0#refugees\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2cwwlKVhttps:\/\/t.co\/DzbvuHHrJh\nDoucheFLUX in Brussels | This simple thing will fix once and for all problem with access to showers http:\/\/bit.ly\/2cnhnHu\u00a0#OPENandChange\u00a0#100andChange\n...\n[maybe one person can tweet these one hour\u00a0in advance?]\n@concrn are\u00a0joining #OPENandChange and we'd invite them to tweet why?\n@Prinzess are joining\u00a0#OPENandChange. Tell us your story and why?\n...\nHow is #OPENandChange going to tie together\u00a0these\u00a0crazy weird wonderful approaches? #100andChange\nSince beginning 2016 we have done Step 1:\u00a0SENSING what is out there doing ambitious work on delivering better care #openandchange #100andChange\nEnding 2016 we are moving to Step 2: SENSE-MAKING through large ethnographic and #SNA study with @op3ncare #OPENandChange\u00a0\nBy winning #100andChange competition we want to move a level up: SCALING to help projects advance through collaboration\u00a0#openandchange #100andChange\nTo show what we preach we are making the proposal draft for @Macfound available and as open as it gets\u00a0buff.ly\/2chVO9O #OPENandChange\nThanks to @@@@@@@@@\nThanks to @@@@@@@@@@\n","comment_id":"24401","post_id":"6698","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 13:42","group_id":"5954"}},{"node":{"title":"Tweets: text broken down + favs","content":"\nWelcome to #OPENandChange Care: An invitation to a\u00a0shared 100 mill$\u00a0bid to fix health and social care.\n#OPENandChange: is it here? is it now? how does it affect me? Tune in for 1hr and tweet it\u00a0to meet the future.\u00a0\nUse #openandchange to join a massive online live conversation taking place now and led by @edgeryders community members\n.@macfound has decided to deliver give a mighty push to fixing the world\u2019s most hairy, unfixable problems -\u00a0#100andChange !\u00a0\u00a0#openandchange\n.@edgeryders and an interconnected web of practitioners from all over are responding with one proposal: http:\/\/openandchange.care\u00a0#100andChange\n#OPENandChange aims to\u00a0PROVIDE PARTICIPATORY, OPEN, SAFE AND ACCOUNTABLE HEALTH AND SOCIAL CARE FOR ALL\u00a0#100andChange\u00a0\u00a0\n...[add teasing\u00a0questions here]\nDid you know\u00a0per capita health care expenditure grows much faster than GDP? Health systems everywhere are under strain\u00a0https:\/\/edgeryders.eu\/sites\/default\/files\/user-Alberto\/Health_care_expenditure.gif #OPENandChange\n.@edgeryders @OpenInsulin @concrn @op3ncare @VeloM2Bxl @nextlearning are taking on the challenge of fixing care fully on! #OPENandChange #100andChange\nWe do it by engaging with projects we know and\u00a0dont yet know. This is an offer for partnering up, you're in time!\u00a0http:\/\/OpenandChange.care\u00a0#OPEandChange\u00a0\nOh. And we will break the competitive logic of grant\u00a0funding in the meantime\u00a0buff.ly\/2cxjwUd #OPENandChange #100andChange\nWe think we will win. Why? #openandchange #100andChange\nWhy\u00a0#OPENandchange?\u00a0Funding one organisation means\u00a0empowering a small group at the top. How about a network of orgs and\u00a0movements?\u00a0#100andChange\nWhy #OPENandChange?\u00a0Diversity trumps ability:\u00a0large swarm of initiatives will be vastly more diverse than an organisation\u00a0#100andChange\nWhy #OPENandChange?\u00a0Decentralized networks learn fast because they rely on knowledge sharing and documentation #100andChange\nWhy #OPENandChange? Sociality in access to knowledge and teaching produces better technology than individual smarts\u00a0#100andChange\nIn Edgeryders alone\u00a0we have 5,300 documented\u00a0sharing knowledge relationships. Advanced analytics enable meaningful data extraction\u00a0#openandchange #100andChange\nWe are already present and mobilized\u00a0in over 30 countries\u00a0#openandchange #100andChange\nWhy is fixing broken social and health-care systems a task for a massive no of people and projects?\u00a0#openandchange #100andChange\nIt is where we are all experts:\u00a0almost every human has been, at some point, both a care giver and receiver\u00a0#openandchange #100andChange\nFor #100andChange competition we are not proposing new ideas: Inspiring projects are already showing that communities are able to deliver care. Yet they are struggling\u00a0#openandchange\nNow we will introduce stories and invite you to connect directly with protagonists. We are one click away and will be so for #OPENandChange #100andChange\n...[fav tweets about projects here - suggest being explicit about location so that we show how worldly we are!\n\u00a0\nOpen\u00a0Insulin\u00a0project!\u00a0#3Dprinter\u00a0#proteins\u00a0#biohacking\u00a0#diabetes\u00a0#solution\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2bQhUUS\u00a0https:\/\/t.co\/xjVGNALo93\nCalais\u00a0Jungle!\u00a0#diy\u00a0#Dunkirk\u00a0#volunteers\u00a0#refugees\u00a0#OPENandChange\u00a0http:\/\/buff.ly\/2cwwlKVhttps:\/\/t.co\/DzbvuHHrJh\nDoucheFLUX in Brussels | This simple thing will fix once and for all problem with access to showers http:\/\/bit.ly\/2cnhnHu\u00a0#OPENandChange\u00a0#100andChange\n...\n[maybe one person can tweet these one hour\u00a0in advance?]\n@concrn are\u00a0joining #OPENandChange and we'd invite them to tweet why?\n@Prinzess are joining\u00a0#OPENandChange. Tell us your story and why?\n...\nHow is #OPENandChange going to tie together\u00a0these\u00a0crazy weird wonderful approaches? #100andChange\nSince beginning 2016 we have done Step 1:\u00a0SENSING what is out there doing ambitious work on delivering better care #openandchange #100andChange\nEnding 2016 we are moving to Step 2: SENSE-MAKING through large ethnographic and #SNA study with @op3ncare #OPENandChange\u00a0\nBy winning #100andChange competition we want to move a level up: SCALING to help projects advance through collaboration\u00a0#openandchange #100andChange\nTo show what we preach we are making the proposal draft for @Macfound available and as open as it gets\u00a0buff.ly\/2chVO9O #OPENandChange\nThanks to @@@@@@@@@\nThanks to @@@@@@@@@@\n","comment_id":"24401","post_id":"6698","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 13:42","group_id":"5954"}},{"node":{"title":"#3 Preparations broken down into individual tasks","content":"\n1. [Everyone] Choose\/prepare our a\u00a0longer form text that tells the story of what we are doing and why\u00a0(e.g. blogposts).\u00a0Break down the longer story texts into a number of tweets using a tool called\u00a0little porkchop\u00a0http:\/\/pork.io\/. Copy paste them into a comment on this event page.\n2. [\u00a0Everyone] Do a search for #openandchange tweets. Pick the best ones. Copy paste them into a comment on this event page.\n3. [Site Admins] Copy paste tweets from the comments into the \u00a0description of this event above.\n4. [Site Admins]\u00a0Use http:\/\/clicktweet.com\u00a0\u00a0to produce \"tweet this\" buttons for each one and edit content of the page above into simple instructions and a series of quotes in this format:\n\"Twitter is like the lunch meeting with potential clients before you do the pitch. [Tweet this]\n5.\u00a0[Workshop leaders]\u00a0Ask people to translate\/remix some of the tweets into their languages. Especially the storytelling ones!\n6. [Site admins]\u00a0Embed tweetchat interface on this page if possible.\u00a0\n7. [Workshop leaders] Rewrite instructions in your own language, update FB event page\u00a0and invite everyone to join there (easier for non signed up people).\nWhat do you think @Noemi, \u00a0@Yannick, @Pavlos , @Natalia Skoczylas , @jahn ?\n","comment_id":"24399","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 10:56","group_id":"5954"}},{"node":{"title":"#3 Preparations broken down into individual tasks","content":"\n1. [Everyone] Choose\/prepare our a\u00a0longer form text that tells the story of what we are doing and why\u00a0(e.g. blogposts).\u00a0Break down the longer story texts into a number of tweets using a tool called\u00a0little porkchop\u00a0http:\/\/pork.io\/. Copy paste them into a comment on this event page.\n2. [\u00a0Everyone] Do a search for #openandchange tweets. Pick the best ones. Copy paste them into a comment on this event page.\n3. [Site Admins] Copy paste tweets from the comments into the \u00a0description of this event above.\n4. [Site Admins]\u00a0Use http:\/\/clicktweet.com\u00a0\u00a0to produce \"tweet this\" buttons for each one and edit content of the page above into simple instructions and a series of quotes in this format:\n\"Twitter is like the lunch meeting with potential clients before you do the pitch. [Tweet this]\n5.\u00a0[Workshop leaders]\u00a0Ask people to translate\/remix some of the tweets into their languages. Especially the storytelling ones!\n6. [Site admins]\u00a0Embed tweetchat interface on this page if possible.\u00a0\n7. [Workshop leaders] Rewrite instructions in your own language, update FB event page\u00a0and invite everyone to join there (easier for non signed up people).\nWhat do you think @Noemi, \u00a0@Yannick, @Pavlos , @Natalia Skoczylas , @jahn ?\n","comment_id":"24399","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 10:56","group_id":"5954"}},{"node":{"title":"#3 Preparations broken down into individual tasks","content":"\n1. [Everyone] Choose\/prepare our a\u00a0longer form text that tells the story of what we are doing and why\u00a0(e.g. blogposts).\u00a0Break down the longer story texts into a number of tweets using a tool called\u00a0little porkchop\u00a0http:\/\/pork.io\/. Copy paste them into a comment on this event page.\n2. [\u00a0Everyone] Do a search for #openandchange tweets. Pick the best ones. Copy paste them into a comment on this event page.\n3. [Site Admins] Copy paste tweets from the comments into the \u00a0description of this event above.\n4. [Site Admins]\u00a0Use http:\/\/clicktweet.com\u00a0\u00a0to produce \"tweet this\" buttons for each one and edit content of the page above into simple instructions and a series of quotes in this format:\n\"Twitter is like the lunch meeting with potential clients before you do the pitch. [Tweet this]\n5.\u00a0[Workshop leaders]\u00a0Ask people to translate\/remix some of the tweets into their languages. Especially the storytelling ones!\n6. [Site admins]\u00a0Embed tweetchat interface on this page if possible.\u00a0\n7. [Workshop leaders] Rewrite instructions in your own language, update FB event page\u00a0and invite everyone to join there (easier for non signed up people).\nWhat do you think @Noemi, \u00a0@Yannick, @Pavlos , @Natalia Skoczylas , @jahn ?\n","comment_id":"24399","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 10:56","group_id":"5954"}},{"node":{"title":"#3 Preparations broken down into individual tasks","content":"\n1. [Everyone] Choose\/prepare our a\u00a0longer form text that tells the story of what we are doing and why\u00a0(e.g. blogposts).\u00a0Break down the longer story texts into a number of tweets using a tool called\u00a0little porkchop\u00a0http:\/\/pork.io\/. Copy paste them into a comment on this event page.\n2. [\u00a0Everyone] Do a search for #openandchange tweets. Pick the best ones. Copy paste them into a comment on this event page.\n3. [Site Admins] Copy paste tweets from the comments into the \u00a0description of this event above.\n4. [Site Admins]\u00a0Use http:\/\/clicktweet.com\u00a0\u00a0to produce \"tweet this\" buttons for each one and edit content of the page above into simple instructions and a series of quotes in this format:\n\"Twitter is like the lunch meeting with potential clients before you do the pitch. [Tweet this]\n5.\u00a0[Workshop leaders]\u00a0Ask people to translate\/remix some of the tweets into their languages. Especially the storytelling ones!\n6. [Site admins]\u00a0Embed tweetchat interface on this page if possible.\u00a0\n7. [Workshop leaders] Rewrite instructions in your own language, update FB event page\u00a0and invite everyone to join there (easier for non signed up people).\nWhat do you think @Noemi, \u00a0@Yannick, @Pavlos , @Natalia Skoczylas , @jahn ?\n","comment_id":"24399","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 10:56","group_id":"5954"}},{"node":{"title":"#3 Preparations broken down into individual tasks","content":"\n1. [Everyone] Choose\/prepare our a\u00a0longer form text that tells the story of what we are doing and why\u00a0(e.g. blogposts).\u00a0Break down the longer story texts into a number of tweets using a tool called\u00a0little porkchop\u00a0http:\/\/pork.io\/. Copy paste them into a comment on this event page.\n2. [\u00a0Everyone] Do a search for #openandchange tweets. Pick the best ones. Copy paste them into a comment on this event page.\n3. [Site Admins] Copy paste tweets from the comments into the \u00a0description of this event above.\n4. [Site Admins]\u00a0Use http:\/\/clicktweet.com\u00a0\u00a0to produce \"tweet this\" buttons for each one and edit content of the page above into simple instructions and a series of quotes in this format:\n\"Twitter is like the lunch meeting with potential clients before you do the pitch. [Tweet this]\n5.\u00a0[Workshop leaders]\u00a0Ask people to translate\/remix some of the tweets into their languages. Especially the storytelling ones!\n6. [Site admins]\u00a0Embed tweetchat interface on this page if possible.\u00a0\n7. [Workshop leaders] Rewrite instructions in your own language, update FB event page\u00a0and invite everyone to join there (easier for non signed up people).\nWhat do you think @Noemi, \u00a0@Yannick, @Pavlos , @Natalia Skoczylas , @jahn ?\n","comment_id":"24399","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 10:56","group_id":"5954"}},{"node":{"title":"Submit to Idea Camp 2017 ?","content":"\nThe Eur Cultural Foundation has a yearly programme for grassroots initiatives and a call for next year closing on Sep 20. The topic is \"Moving Communities\". @Tomma I thought you guys might be interested:\nhttp:\/\/www.culturalfoundation.eu\/idea-camp-2017\n","comment_id":"24398","post_id":"6514","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 10:48","group_id":"0"}},{"node":{"title":"yes !","content":"\nYes, I am submitting :-)\nFingers crossed !\n","comment_id":"24397","post_id":"6746","user_id":"8959","parent_comment_id":"24390","creation_date":"Tuesday, September 13, 2016 - 10:11","group_id":"0"}},{"node":{"title":"Need for a traumaspecialist? ","content":"\nhello @Village-Psy\nI am a traumaspecialist (an integrative one, relying on the works of Peter Levine, Bessel van der Kolk, Pat Ogden, e.o). I provide workshops on trauma, supervision and individual traumatherapy in my Trauma Tour Bus. In the winter I want to help in the refugee camps in Greece - since that will be a volunteer job, I am looking for paid work in the region too ... Are there opportunities at your village? Thx for replying @ybe\n","comment_id":"24396","post_id":"6705","user_id":"8959","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 09:52","group_id":"0"}},{"node":{"title":"alternative economy","content":"\nI think a basic income for everyone would be a good start to an alternative economy. It would tackle the fear of not having enough. Thus, everyone of us could contribute freely to society providing things and services we're good at. For me (traumatherapist on wheels) it would be a perfect solution : be able to work \/ to give to the world without having to think about 'will I earn enough mony doing so?'\nIn Finland, a basic income experiment is on its way - I am very curious what the outcome will be, and, eventually, how this wil change economy and society!\n\u00a0\n","comment_id":"24393","post_id":"6317","user_id":"8959","parent_comment_id":"0","creation_date":"Tuesday, September 13, 2016 - 09:12","group_id":"0"}},{"node":{"title":"Maybe we can help?","content":"\nI really like the idea of a mixed model. We are now in the middle of a crazy operation to find support for about 150 care-related initatives. Maybe you could be one of them?\u00a0\nInfo:\u00a0https:\/\/edgeryders.eu\/en\/openandchange-coordination\/your-openandchange-application-process\n","comment_id":"24390","post_id":"6746","user_id":"34","parent_comment_id":"24383","creation_date":"Tuesday, September 13, 2016 - 01:22","group_id":"0"}},{"node":{"title":"Great!","content":"\nI got excited reading your piece @Federico Monaco!\u00a0Your approach to learning\u00a0and willingness to experiment is exactly what the educational system needs right now. This sums it up quite well for me: \"By encouraging sharing of data, more interdisciplinary collaboration, creativity and networking educational institutions could create a new breed of health professionals.\".\u00a0@trythis has some interesting\u00a0points of inspiration as well...\nAre there any particular sources of inspiration you use to come up with new ways of teaching? Have your experiments\u00a0ever backfired?\n","comment_id":"24389","post_id":"6677","user_id":"8889","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 23:58","group_id":"0"}},{"node":{"title":"Personalized medicine","content":"\nI'm very intrigued by this idea: \"Considering the increasingly ubiquitous 3D technology, many of the medical tools can be soon printed cheaply by anyone. Small ethical pharmaceuticals will be able to produce their own medicine.\". It would leave out the parties who suck the most money of out\u00a0of the local communities. But more interestingly, it would allow for personalized medicine. People with rare diseases or allergies, who are often neglected by corporations based on economical incentives. Empowering these people with the tools to provide for themselves or have a close one provide for them seems like a revolutionary way forward. Then again, safety and legal hurdles quickly come to mind. I hope there's at least room for experimenting with it.\n1000 people is already a lot... Congratulations!\u00a0What do you feel is the biggest challenge in order to\u00a0connect\u00a0these existing, fragmented initiatives and replace competition in favor of cooperation?\n","comment_id":"24388","post_id":"6747","user_id":"8889","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 23:43","group_id":"0"}},{"node":{"title":"Tool #2 A Tweetchat room","content":"\nhttp:\/\/tweetchat.com\/room\/openandchange\nIt solves the issue that it's difficult to follow a hashtag while also actively participating in the conversation. With the usual twitter interface you need to have two tabs up and switch between them all the time.\n\nTweetchat is a better interface for doing it:\n\n","comment_id":"24387","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:52","group_id":"5954"}},{"node":{"title":"Tool #2 A Tweetchat room","content":"\nhttp:\/\/tweetchat.com\/room\/openandchange\nIt solves the issue that it's difficult to follow a hashtag while also actively participating in the conversation. With the usual twitter interface you need to have two tabs up and switch between them all the time.\n\nTweetchat is a better interface for doing it:\n\n","comment_id":"24387","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:52","group_id":"5954"}},{"node":{"title":"Tool #2 A Tweetchat room","content":"\nhttp:\/\/tweetchat.com\/room\/openandchange\nIt solves the issue that it's difficult to follow a hashtag while also actively participating in the conversation. With the usual twitter interface you need to have two tabs up and switch between them all the time.\n\nTweetchat is a better interface for doing it:\n\n","comment_id":"24387","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:52","group_id":"5954"}},{"node":{"title":"Tool #2 A Tweetchat room","content":"\nhttp:\/\/tweetchat.com\/room\/openandchange\nIt solves the issue that it's difficult to follow a hashtag while also actively participating in the conversation. With the usual twitter interface you need to have two tabs up and switch between them all the time.\n\nTweetchat is a better interface for doing it:\n\n","comment_id":"24387","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:52","group_id":"5954"}},{"node":{"title":"Tool #2 A Tweetchat room","content":"\nhttp:\/\/tweetchat.com\/room\/openandchange\nIt solves the issue that it's difficult to follow a hashtag while also actively participating in the conversation. With the usual twitter interface you need to have two tabs up and switch between them all the time.\n\nTweetchat is a better interface for doing it:\n\n","comment_id":"24387","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:52","group_id":"5954"}},{"node":{"title":"Testing different tools to do this","content":"\nFirst up: Click to tweet\u00a0https:\/\/clicktotweet.com\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/ctt.ec\/k2U3d+\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/openandchange.care\n\n","comment_id":"24386","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:34","group_id":"5954"}},{"node":{"title":"Testing different tools to do this","content":"\nFirst up: Click to tweet\u00a0https:\/\/clicktotweet.com\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/ctt.ec\/k2U3d+\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/openandchange.care\n\n","comment_id":"24386","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:34","group_id":"5954"}},{"node":{"title":"Testing different tools to do this","content":"\nFirst up: Click to tweet\u00a0https:\/\/clicktotweet.com\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/ctt.ec\/k2U3d+\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/openandchange.care\n\n","comment_id":"24386","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:34","group_id":"5954"}},{"node":{"title":"Testing different tools to do this","content":"\nFirst up: Click to tweet\u00a0https:\/\/clicktotweet.com\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/ctt.ec\/k2U3d+\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/openandchange.care\n\n","comment_id":"24386","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:34","group_id":"5954"}},{"node":{"title":"Testing different tools to do this","content":"\nFirst up: Click to tweet\u00a0https:\/\/clicktotweet.com\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/ctt.ec\/k2U3d+\nTweet: Smart swarms for the win: Our #OpenandChange draft application to is online http:\/\/openandchange.care\n\n","comment_id":"24386","post_id":"6698","user_id":"45","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 22:34","group_id":"5954"}},{"node":{"title":"Conclusions for practice applications","content":"\nReally curious to\u00a0know more about what conclusions you come to\u00a0doing these experiments. We have a space where\u00a0we cook\u00a0weekly dinners for up to 40 people, but we have a relatively full functioning kitchen. We've talked about how we could take our skills of cooking for large groups into situations, such as occupations,\u00a0blockade\/encampments\u00a0 or the street and do the same with limited equipment most efficently. Have you thought about creating something like a sort of toolkit with your findings about how to best cook in the street, recipes that you have discovered work well with these limitations, etc? Would be really great. Look forward to seeing where this goes.\n","comment_id":"24385","post_id":"6453","user_id":"8896","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 19:49","group_id":"0"}},{"node":{"title":"The group I meant is OPENandChange","content":"\nWith this effort of reaching out and connecting groups doing outstanding work at the edge of health\/ social care we\u00a0are doing workshops in several cities in Europe, and one is in Paris on the 25th of September with more open science and tech projects. Will you be joining?\n@Nadia may know best who else in the community is going to be there.\u00a0\nI'm in Brussels the day before and probably won't come, but still very interested.\nOh, thanks for the reply.\u00a0\"regulation by design\".. this is new to me and I hardly get what it means, so when you have some time do tell.\n","comment_id":"24384","post_id":"6708","user_id":"32","parent_comment_id":"24381","creation_date":"Monday, September 12, 2016 - 18:55","group_id":"0"}},{"node":{"title":"Hello Alberto,","content":"\nHello Alberto,\nThank you for your comment.\nGroup therapy is a quite common part of\u00a0 a therapy programm in clinical setting (psychiatric hospitals). What I like to do though is help individuals and communities to enhance their knowledge about trauma and foster their resilience in the face of trauma. I am convinced that being 'trauma-informed' can help us all cope better with traumatic events in our lives and in the world. We need to talk about trauma and pain more openly. We need to adress trauma and pain more directly, not only in the setting of a psychotherapeutical process.\nAs for the financial aspects of my touring, I would like to be able to work also with people with little or no ressources. So, I plan to combine normal charging with pay-what-you-can fees. I also plan touring and helping in the refugeecamps of the mediterranean area - that part of my tour needs funding. I did not find extra financial support yet ... but I hope I will soon!\n\u00a0\n","comment_id":"24383","post_id":"6746","user_id":"8959","parent_comment_id":"24382","creation_date":"Monday, September 12, 2016 - 18:51","group_id":"0"}},{"node":{"title":"The wandering therapist","content":"\nHello and welcome, @ybe ! This is a suggestive image: a therapist driving her bus into the sunset, looking for traumatized people to help out.\nI am curious as any previous attempts of dealing with trauma in groups. I know nothing about psychotherapy, but I do recall that this problem was met by army psychologists in wartimes. Too many traumatized soldiers, not enough therapists. Therapy had to be done in groups (and here is where Wilfred Bion's intellectual journey starts) . Has this stabilized into standard practice?\nAs for supporting your activity as a wandering psychotherapist, I guess you are down to two possibilities: charge for your services, and hunt for grants. The first one is by far the better one, for you. Do you foresee any problem in charging patients? Have you run the numbers to figure out how much revenue do you need to generate?\u00a0\n","comment_id":"24382","post_id":"6746","user_id":"34","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 17:45","group_id":"0"}},{"node":{"title":"@Noemi, thank you for your","content":"\n@Noemi, thank you for your comment. Safety and regulation are very important for us and as a community and a\u00a0non-for-profit, we plan on setting up partnerships to deal with these issues. I mean regulation will be more the concern of manufacturers and distributors. Luckily we have within the community 3 people expert in regulation issues in medical devices development and we work accodring to the principle of \"regulation by design\" as well as \"safety by design\"\u00a0;) we first considered regulation and safety and build our development according to the main guidelines.\u00a0\nThen i haven't heard about the group\u00a0about exploring\u00a0open alternatives in (e)health and healthcare\u00a0support. Could tell me more ?\nFinally, thank you for both links, they are very interesting.\u00a0\n","comment_id":"24381","post_id":"6708","user_id":"8870","parent_comment_id":"24371","creation_date":"Monday, September 12, 2016 - 15:44","group_id":"0"}},{"node":{"title":"You seem to have adaptability embedded already","content":"\nHey @WinniePoncelet! The fact that you could set up an education program in addition to your biohack space says a lot with respect to how open you keep your initiative. With questioning sources of funding, why do you guys feel the need to position yourselves so clearly? Do you have to choose how much anti something like government you are?\u00a0Have you had opportunities to work with big biotech and passed?\u00a0I'm\u00a0curious because it looks like\u00a0hacker values are there\u00a0from ReaGent inception - openness, freedom, passion.. so even if the model changes or mixes government funds with revenues through lab\u00a0membership or\u00a0classes you will still be operating under those things.\u00a0\nWith Edgeryders we had always had\u00a0some controversy: when we were under the Council of Europe shell it took more work to be credible to activists; when we became independent and taking on also private clients someone would come in and question that; when we go into a room and be too radical someone on the other side will cringe. It's somewhat natural, as long as the work is aligned with our mission\u00a0and speaks for itself.\nOr:\u00a0Is bioengineering these days\u00a0\u00a0so controversial that you need to be firm about what you are willing \/ not willing to do and who you're doing it for?\u00a0\nI would recommend you read a short piece about selling as a moral act by @lasindias and invite @Juanjo Pina who is experienced in activist market production\u00a0to give a piece of advice. In the past they were asking if the market is\u00a0the \"ultimate alternative to the enclosure of fresh ideas into the dependence of public money or a way for converting activist into established business people\"?\n","comment_id":"24380","post_id":"6709","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 15:43","group_id":"0"}},{"node":{"title":"Poesie in multilingua!","content":"\nGrazie Rune per il complimento ...e per l'incoraggiamento (a non esagerare!)...\nEntrando nel merito del Tuo post, ritengo anch'io occorra una \"localizzazione\" pi\u00f9 spinta di questa piattaforma dato che purtroppo - almeno in Italia - la lingua inglese costituisce ancora un ostacolo importante e di fatto \"disarma\" qualunque buona intenzione.\nNon me ne vogliano i gestori ed i moderatori di questo strumento, ma credo che sia inoltre necessario ripensare in modo pi\u00f9 \"usabile\" questo spazio di comunicazione e di condivisione.\nRelativamente alla questione del target \"utile\" per le varie iniziative, come da Te sottolineato, penso occorra pensare a strategie (ancora) locali di informazione, di sensibilizzazione e di coinvolgimento delle innumerevoli entit\u00e0 rappresentative dell'arcipelago delle disabilit\u00e0 che, purtroppo per ragioni storiche, sono realmente poco inclini a collaborare fattivamente con quanti (a torto, naturalmente!) ritenuti concorrenti se non avversari nel complicato sistema della visibilit\u00e0 e del riconoscimento istituzionale che si traduce sistematicamente\u00a0 in sovvenzioni piuttosto che in vere e proprie convenzioni quasi sempre prive di oggettive valutazioni in tema di costi-benefici e di efficacia-efficienza in un contesto di progettazione e di pianificazione degli interventi e dei servizi.\nPersonalmente, come scritto altrove, ho trovato poca predisposizione da parte di queste a me note organizzazioni a creare sinergie ed a mettersi in gioco in progetti che non si traducano in un immediato \"ritorno\" istituzionale. Tuttavia permango nell'idea (folle?) che questo approccio possa cambiare in favore di un atteggiamento pi\u00f9 lungimirante e pragmatico, in funzione di una maggiore diffusione delle competenze, a vantaggio di una crescente reale rappresentativit\u00e0\u00a0 che possa prescindere dalle dinamiche (sfittiche quanto ricattatorie) che attualmente\u00a0 imbrigliano prevalentemente i portatori dei bisogni con i vari livelli dell'amministrazione della cosa pubblica e del settore economico finanziario.\nQuesto, pi\u00f9 di ogni altra cosa, \u00e8 uno dei \"must\" fondamentali di OpenCare!\n","comment_id":"24379","post_id":"6341","user_id":"8523","parent_comment_id":"24255","creation_date":"Monday, September 12, 2016 - 15:38","group_id":"0"}},{"node":{"title":"Great project","content":"\n@Noemi thanks for highlighting the project echOPEN. :)\n\u00a0\n\u00a0\n","comment_id":"24378","post_id":"6708","user_id":"8708","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 13:15","group_id":"0"}},{"node":{"title":"Mm design sprint at workshop in NYC on 2\/10","content":"\nHi @concrn @maymay and I will be at the OPENandChange workshop we're organising at the @Woodbinehealth space in Queens on october 2:\u00a0https:\/\/www.facebook.com\/events\/208119996269998\u00a0.\u00a0\nAhead of that the 1 hr crowdconference on twitter later this month is a good opportunity to meet everyone, ask questions, draw in more people. So by the time we are in the room, we're already made some progress etc:\u00a0https:\/\/edgeryders.eu\/en\/agora\/crowdconference-to-tweet-and-share-openandchange-20-sep-at-1700\nThere's already people showing up with UI\/UX skills. From a pm:\u00a0\"I was looking over that buoy app ux test video. Have y'all been using it? I'd like to talk to y'all more about visual design for it. I mostly do digital\/visual design in the fashion space, but I think my ui\/ux could be helpful for this. Have you seen signal? That's friends of ours who developed and designed it; I think they did a really good job of user-accessibility though for a somewhat foreign concept of encryption, and have also been able to make a platform that can scale. Eitherway, we can talk more when you're in town. Hyped to hear more about edgeryders.\"Also a friend of mine working with infosec will be joining us.\n","comment_id":"24376","post_id":"6649","user_id":"45","parent_comment_id":"24346","creation_date":"Monday, September 12, 2016 - 13:10","group_id":"0"}},{"node":{"title":"Also ping Maria for future activities involving echOPEN","content":"\n@Maria I thought what these guys are doing might interest you over at SCIMPulse and your planned prototyping\u00a0events this fall\u00a0:-)\n","comment_id":"24372","post_id":"6708","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 12:34","group_id":"0"}},{"node":{"title":"How do you guys deal with safety and regulation issues?","content":"\n@Olivier hi, welcome on board. Are you part of the group coming together later this month to explore open alternatives in (e)health and healthcare\u00a0support?\nI'm adding here two recent\u00a0opensource projects\u00a0that we know of for medical treatment,\u00a0and which\u00a0you might enjoy connecting with.\n\nOpen source game apps as solutions to respiratory\u00a0diseases!\nEfforts to open up software eg pacemakers for heart conditions\u00a0to enable increased security by the logic of: more access -> more resilience and better quality. It would be very appreciated\u00a0if you could jump in and tell us\u00a0how you cover the regulatory issues so that\u00a0your product can\u00a0actually be used. For example, what part of your code will you certify and does the fact that it's opensource make it more reliable or not for its future uses?\n\n","comment_id":"24371","post_id":"6708","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 12:32","group_id":"0"}},{"node":{"title":"I see, thanks for the report!","content":"\nSo Happier, an evaluation study on physical actitivity effects on elderly wellbeing, reports significant outcomes in terms of numbers of falls (one less with every 18 months).\u00a0What would be even more interesting is to see if there are community led projects similar to these which are truly open : they cater to anyone who wants to, providing\u00a0full\u00a0open access to all stakeholders\u00a0delivering or benefitting from the service:\u00a0I see both Gymsana and Happier cater to\u00a0a controlled target and study population - in this case people in nursing homes.\u00a0\nEzio Manzini who is a service designer and community member, has written about open networks of care here. I'm linking to it because you wrote that\u00a0you're interested in new ecosystems and intersections, which is exactly the topic we are exploring too!\n","comment_id":"24367","post_id":"6684","user_id":"32","parent_comment_id":"24197","creation_date":"Monday, September 12, 2016 - 12:00","group_id":"0"}},{"node":{"title":"How does the collaboration with the city work?","content":"\nHi @Kipos3, welcome to Edgeryders. I'm a colleague of Natalia and Pavlos whom you probably know already, based in Romania. Thanks for sharing your project, I'm a fan of community gardening ever since I've been to Tbilisi in Georgia and we met a group called Guerilla Gardening (meet @Nick Davitashvili one of their leaders here), who were camped in a public park but also did a lot of school activities to teach kids how to plant. See this video starting from 50':\n\n\n\n\nBut their relationship with the local authorities is nowhere near as good as yours. You can get some of the hints from their name :)\u00a0they are\u00a0trying to get the pedestrian areas secure from cars by setting up planting flowers and trees in second hand tires on\u00a0the sidewalks.\u00a0They get fined because officially it's considered littering and throwing garbage around. I understand this is not them acting offensively, but solving problems\u00a0that authorities won't deal with.\nCurious: how did Kipos3 turn administration into an ally?\n","comment_id":"24359","post_id":"6707","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 10:29","group_id":"0"}},{"node":{"title":"How does it work, this mix of services?","content":"\n@Kostis Samaras thanks for telling the story. Are you yourself volunteering in this community?\u00a0\nI'm curious how does the group\u00a0mix food provision with spiritual support, and if it is the same people who receive these two different\u00a0kinds of service. Alternatively, I can imagine people who have accessed new levels of mental wellbeing are in turn more inclined to pay it forward and do humanitarian actions, like in Maria's personal history.\nAlso, have you participated in the OPENandChange workshop? I'm working with Natalia, Pavlos\u00a0and others here and have been watching what is happening in Thessaloniki from afar, it's been great to see people very active on the ground!\n","comment_id":"24357","post_id":"6706","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 12, 2016 - 09:29","group_id":"0"}},{"node":{"title":"ok, but what if you feel unequal to the other?","content":"\nOk, but what becomes the \"being strangers to each other\" when it combines with a \"feeling unequal to the other\"? Being alien to each other? To what extend are the strategies you develop or suggest effective in that case? Did some have (good or bad) experiences for that case? But if one develops specific strategies for that case, one takes the risk to confirm the unequality one wants to overcome or sublimate! The question I raise is relevant, I think, for any type for \"feeling unequal\". Any hint?\nLaurent dUrsel\n","comment_id":"24347","post_id":"6225","user_id":"8932","parent_comment_id":"0","creation_date":"Sunday, September 11, 2016 - 12:54","group_id":"0"}},{"node":{"title":"Software\/Training collaboration","content":"\nI feel like we could work well together on software dev. We are both open source but perhaps our team and your team could collaborate.\u00a0\n\nWe have also developed a compassionate responder training curriculum that may work well for friends who want to be more prepared to respond to eachother in crisis.\u00a0\n","comment_id":"24346","post_id":"6649","user_id":"8944","parent_comment_id":"0","creation_date":"Sunday, September 11, 2016 - 12:11","group_id":"0"}},{"node":{"title":"Evolution and testing","content":"\nHi @Noemi and @Alberto. Thanks for your feedbacks. :D\nIn 2014, we started with the positive expiratory pressure therapy for CF children. It was in fact not the best move as the exercice takes about 30 minutes daily, which would require a lot of resources to have interesting games, plus the fact that the exercice is quite strict, so challenging to make it interesting. We then thought about other, more free gameplays, which we have to develop. We are now working on mini-games for asthma, that are about triggers and how to take the medicine. We want to reuse the work done for CF to build short games for aerosoltherapy.\nRegarding tests, we did a prestudy with ten children in a hospital, to see their interest, and that was positive. We are preparing two studies with focus groups to test the games that have been improved.\nMany learnings were also about setting the collaboratife framework, platform, etc. We are writing a few articles about that, that should be released in the next month. The initiative mostly advances during events as our community is always small, but we start to have funding and are going to redistribute them, with the aim to mobilize contributors on the long run. One big challenge is also that our non-exclusive model is not easily understood by authorities, so it takes a lot of time to explain it, and many fundings are not available as most competitions support profit-driven organizations. So we are thinking about creating a specific structure to be able to access these resources. Another thing is to move from proprietary to free softwares, for example from Google docs to a wiki, or from Unity game engine to another one. So they are lots of interesing challenges at different levels. :)\nWe invite you to subscribe to our YouTube, where we are going to release 15 interviews of what participants learned during the last gamejam. In the next months, we intend to do gamejams in Montreal, Geneva, and possibly Paris and Lima if you d'like to join there or remotely!\n","comment_id":"24334","post_id":"6728","user_id":"8955","parent_comment_id":"0","creation_date":"Saturday, September 10, 2016 - 15:04","group_id":"0"}},{"node":{"title":"Let's make this the topic\/theme for the NYC workshop?","content":"\nWould you be up for articulating the question and posting it in a status update on the event page? This would help get the ball rolling. Maybe like to this thread? I'm looking into the accomodation solutions btw. At this end we are actiely working towards settingup a phycial edgeryders space, some kind of coliving and working that would allow us to host people for extended periods of time as they work on their initiatives . i.e. time free from the tyranny of having to pay rent to just get on with the work that needs doing. It's something I would like to bring up at the workshop too- models for doing that sustainable and with very little money.\n","comment_id":"24332","post_id":"6644","user_id":"45","parent_comment_id":"24165","creation_date":"Saturday, September 10, 2016 - 14:13","group_id":"0"}},{"node":{"title":"Second that","content":"\nCongrats @breathinggames ! I also would like to know about the testing. opencare is about honest sharing of knowledge, including things that don't quite work as expected. In fact, failures (especially non-lethal)\u00a0tend to be more interesting datapoints than successes, because we can learn more from them. :-)\n","comment_id":"24331","post_id":"6728","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, September 10, 2016 - 13:27","group_id":"0"}},{"node":{"title":"Amen to that","content":"\nAgree with most everything @Natalia Skoczylas and @Noemi are saying. The only difference is that I do appreciate that Uber\/Airbnb create some value for local communities, by giving some extra freedom to people on the ground. For example, say\u00a0you notice that there is a long queue for taxis at your local airport on Friday nights.\u00a0You can then in principle step in as an Uber driver and make yourself availabe for that time slot, if you need the money more than the time. It is a market clearing mechanism, but a clearing market is, in itself, a good thing. What's bad is a market underpinned by asymmetric power relationships. But we have that anyway: taxi drivers telling people \"you can't work here, this is our turf\" is an act of violence. It is no coincidence that most Uber drivers in Brussels are\u00a0Arabs: plenty of unemployed\/underemployed young Arabs in town, and\u00a0Uber lowers the threshold for them to enter the business. Without it, driving for money is off limits for them. But you have all heard this before, many times.\u00a0\n","comment_id":"24330","post_id":"6304","user_id":"34","parent_comment_id":"24323","creation_date":"Saturday, September 10, 2016 - 12:44","group_id":"0"}},{"node":{"title":"What responses have you had?","content":"\nHi @breathinggames, whoa you rock. How did the prototype testing go, I imagine this is the kind of practical solution that literally everyone loves?\u00a0\nPS Congrats for the large numbers of partners you managed to bring on board (I counted 18 on your website!)\n","comment_id":"24324","post_id":"6728","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 9, 2016 - 20:51","group_id":"0"}},{"node":{"title":"Non-profit non-regulated health providers difft from Uber ","content":"\n@Alberto, we should keep your line in mind and mull over it: not scaling as a solution to survivability!\n@Natalia Skoczylas my position is similar to yours: I cant argue in favor of\u00a0\"vulnerable\" big\u00a0companies\u00a0as long as they do\u00a0not give back to the community when they can afford to. Ok, they started by differentiation in their business model in that they are not a taxi company, they are a car sharing service. But de facto\u00a0they operate in the same market\u00a0except not playing by the same rules as everyone, and taking a route in which they dont make a claim on new and better rules. Or maybe I'm missing that claim.\u00a0To me, the difference between future clinics such as @steelweaver 's or\u00a0Helliniko-turned-big and services like UBER is that the former reshape markets to make it better for an overwhealming majority, while the latter just want to stay outside markets for a bigger margin. Yes, they made a contribution in their disruption - I see how bigger the service quality is\u00a0on the local taxi market where I live and where UBER just arrived, but that's not enough when they can potentially take more from the community than what they give.\n","comment_id":"24323","post_id":"6304","user_id":"32","parent_comment_id":"24194","creation_date":"Friday, September 9, 2016 - 20:25","group_id":"0"}},{"node":{"title":"This would deserve being turned into a guide sometime.","content":"\n@Rune, I took the liberty of converting this challenge response\u00a0into a wiki as I keep coming back to this whenever I (re)read other stories.\u00a0Making a quick note for now:\nThere are many points already being made in OpenCare about circumventing existing system regulations. Aside those you link to there is:\n\u00a0\nStepping outside the commercial model\u00a0in a donation based\u00a0informal acupuncture clinic, by @steelweaver.\nHelliniko clinic without legal or taxable status - which is one of the reasons why\u00a0they are\u00a0not accepting donations in money.\n\u00a0\n","comment_id":"24322","post_id":"6665","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 9, 2016 - 19:45","group_id":"5954"}},{"node":{"title":"This would deserve being turned into a guide sometime.","content":"\n@Rune, I took the liberty of converting this challenge response\u00a0into a wiki as I keep coming back to this whenever I (re)read other stories.\u00a0Making a quick note for now:\nThere are many points already being made in OpenCare about circumventing existing system regulations. Aside those you link to there is:\n\u00a0\nStepping outside the commercial model\u00a0in a donation based\u00a0informal acupuncture clinic, by @steelweaver.\nHelliniko clinic without legal or taxable status - which is one of the reasons why\u00a0they are\u00a0not accepting donations in money.\n\u00a0\n","comment_id":"24322","post_id":"6665","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 9, 2016 - 19:45","group_id":"5954"}},{"node":{"title":"\"FDA's limited resources for looking at the code of the devices\"","content":"\n@Nadia at one point was proposing to look into a community-run certification scheme for the code in medical devices, vaguely inspired from http:\/\/www.peertopatent.org\/\u00a0.\u00a0It could be one of the projects in OpenAndChange!\u00a0\n","comment_id":"24321","post_id":"6620","user_id":"34","parent_comment_id":"24305","creation_date":"Friday, September 9, 2016 - 19:18","group_id":"0"}},{"node":{"title":"Aw :-(","content":"\nProbably the easiest is to find\u00a0a human\u00a0carrier, you never know with medicine across borders.\n","comment_id":"24306","post_id":"6678","user_id":"32","parent_comment_id":"24301","creation_date":"Friday, September 9, 2016 - 10:50","group_id":"0"}},{"node":{"title":"Some references","content":"\nFirst off, let me apologise for the long delay. I have been truly buried in work, and my life got heavily disrupted by personal matters for a couple months.\n@Rune\nI think we have some miscommunication here. I'm not suggesting open source is more reliable, or the only way to go with medical devices. However, there is an issue of transparency of the code to the patient, that has 'similar' issues to the issues of open source.\nOn your other points though, you rightly note that there is a lot of safety and regulation around medical devices. However, we still know that user input issues pervade the safety of medical devices. For examples, see the paper Preventing Medication Errors by \u00a0P Aspden, J Wolcott, J L Bootman, L R Cronenwett:, or any of a number of papers by Harold Thimbleby. The paper Killed by Code written by Sandler et al, also details many case studies that you might be interested in. Getting back to the point about safety regulation, I don't believe that safety regulation takes security into account as regularly. This istarting to happen, but very slowly. This is why the paper \"Pacemakers and implantable cardiac defibrillators: Software radio attacks and zero-power defenses\" is so powerful. They took an FDA certified device, and showed it was possible to make it operate unsafely after some security analysis.\nThere are many more things we might discuss about regulation, such as the FDA's limited resources for looking at the code of the devices. However, there are some good things too, such as the MAUDE database. http:\/\/www.accessdata.fda.gov\/scripts\/cdrh\/cfdocs\/cfMAUDE\/search.CFM\nBy making this database available, we can search for adverse events and study this in an evidence based approach, as you rightly request. I'm not here to inflate the claims, and honestly I prefer to let Marie do the talking about these subject because her patient viewpoint is balanced and essential. However, I'm happy to provide more reading and evidence, when time permits.\n","comment_id":"24305","post_id":"6620","user_id":"8512","parent_comment_id":"0","creation_date":"Friday, September 9, 2016 - 10:26","group_id":"0"}},{"node":{"title":"Interesting outcome","content":"\nThat's an interesting development! Thanks for sharing.\nI'm\u00a0actually trying\u00a0to send some medicines to a friend in Serbia at the moment, because he got the meds\u00a0prescribed for Lyme\u00a0but cannot buy them\u00a0over there. It really doesn't make any sense at all.\n","comment_id":"24301","post_id":"6678","user_id":"8889","parent_comment_id":"24248","creation_date":"Thursday, September 8, 2016 - 23:51","group_id":"0"}},{"node":{"title":"We build a free\/libre and open source solution for asthma!","content":"\nThanks for sharing @Michel and\u00a0@Costantino!\nTo follow @Alberto and @Noemi, I'd like to invite you to discover our initiative, which builds a common on respiratory health including free\/libre and open-source games and flowmeter. Also on Edgeryders. :D\n","comment_id":"24299","post_id":"6552","user_id":"8955","parent_comment_id":"0","creation_date":"Thursday, September 8, 2016 - 23:02","group_id":"0"}},{"node":{"title":"Love the Cornerstone Cafe idea!","content":"\nHi @focseattle, welcome to Edgeryders!\u00a0How did you hear about us, I wonder? I think you're the first community initiative I've heard about in that\u00a0area of the US.. \u00a0so lovely\u00a0to meet you. I'm not a mother (yet) but I can imagine the comfort in a period which can be very depressing for women for reasons that are not simple\u00a0to grasp by mothers themselves, let alone by the community without a support structure.\nI see the cafe was crowdfunded. Is it working now after two years? I wonder if you've managed to grow your support base to not just families of color, but to others\u00a0who are keen on hanging out in a more culturally aware environment..\u00a0\nAnd also: is your\u00a0\n","comment_id":"24288","post_id":"6718","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, September 8, 2016 - 13:45","group_id":"0"}},{"node":{"title":"It's a start...","content":"\n@Rune sorry for the delay in responding. Not taken negatively at all.\u00a0It would be natural to analyse the risk factors involved.\nFrom what I read it cost the students \u20ac70 to build from \u201ctheir\u201d resources. The students developed the wheelchair design for users in developing countries using whatever materials are most readily available in each region. \u00a0The idea is that people close to the end user should be able to build, assemble and disassemble it themselves. DIY Wheelchair can be built with the most affordable materials in each country: PVC pipes, bamboo etc.\n\u00a0This is a solution that is always be tried and tested, back in 1993 and many others. They\u2019re aim was to develop an affordable solution to improve the lives of people. aims to promote inclusion and improve the mobility of disabled people with limited resources from developing countries, where only a minority of those in need of wheelchairs has access to them.\nThe DIY Wheelchair isn\u2019t a product, but a toolkit with assembly instructions\u00a0that can be downloaded and a video demonstration\u00a0which lends the user to use their own resources in the region to\u00a0\u00a0assemble the chair.\u00a0It\u2019s a start.\nHowever, there are challenges of an affordable design. This type of open design has some drawbacks, since it lets users alone. Without a support network including designers, for the\u00a0ergonomics to be satisfied and, users could use badly the instructions or not use them at all. More work to done in this respect.\n\u00a0\n","comment_id":"24269","post_id":"6632","user_id":"8708","parent_comment_id":"0","creation_date":"Wednesday, September 7, 2016 - 11:29","group_id":"0"}},{"node":{"title":"Hi Noemi,","content":"\nHi Noemi,\nWe lead by example as well as train the community members to become responders. Feel free to call with more questions! I'd love to chat 415-881-8278\n\u00a0\nJacob\n","comment_id":"24263","post_id":"6703","user_id":"8944","parent_comment_id":"24215","creation_date":"Tuesday, September 6, 2016 - 21:30","group_id":"0"}},{"node":{"title":"Of course you are welcome","content":"\nHello Laurent, of course you are welcome, you can always bring somebody else from your team with you, i just need to know how much people will come so i prepare the accomodation as good as possible.\n\n\u00a0\n","comment_id":"24257","post_id":"6685","user_id":"8743","parent_comment_id":"24227","creation_date":"Tuesday, September 6, 2016 - 12:29","group_id":"0"}},{"node":{"title":"Is \u2018Fuffa\u2019 sterile or fertile? Reproductive or evolutive?","content":"\nSei un grande poeta @francesco Maria ZAVA e i tui posts meritano un traduzione multilingua.\nAs I have been virtually living in OpenCare spaces for some time I find myself absorbed and transformed into a social network junkie, searching for something, being inspired, learning, trying to add value. Many things to say\u2026.so i\u2019ll just get to the point...and to do so I need some labels (\u2018etichetta\u2019). \u00a0\nI am in the group of \u2018suppliers\u2019 who are supposedly helping \u2018consumers\u2019 \nMy impression is that this network tissue is made of 99% \u2018suppliers\u2019 leaving the \u2018Fuffa\u2019 sterile. Although \u2018fuffa\u2019 tends mysteriously to grow by it self I believe we seriously need to involve some fertilizers and seeds.\n\u00a0\nWorth saying: where are the \u2018consumers\u2019 ? How can we involve the users (handicapped, diabetics, etc)? And I intend direct, firsthand involvement here like this https:\/\/edgeryders.eu\/ka\/node\/6503.\n\u00a0\nMy idea is a pledge for everybody to try to invite the \u2018consumers\u2019 to comment.\nWe need a better landing page than opencare.cc (but I have no idea). In local languages. A way of triage connecting people with common issues as I have already pointed out elsewhere. \u00a0As OpenCare is pretty scattered we need some labels (like it or not)\n\u00a0\nWhat do you guys @op3ncare, @Costantino,@Nadia, @Alberto, @Federico Monaco think?\n\u00a0\nI am on my box againg because I have been sharing the link opencare.cc and https:\/\/edgeryders.eu\/en\/op3ncare\/home. Either people finds it too intimidating (like i did) or they don\u2019t care. I\u2019d like to know\n\u00a0\nNote: Fuffa is the unesthetic little wad of wool that forms on wool clothes or hot air\n\n\n\u00a0\n","comment_id":"24255","post_id":"6341","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, September 6, 2016 - 12:22","group_id":"0"}},{"node":{"title":"Were you happy with the workshop?","content":"\nHi @Pavlos, thanks for reporting.\nDid you think people could connect their stories with dimensions of care? For example, in the Improve and Complement sections, were there projects in the room already contributing to some of those areas? I'm thinking of the many \"civic led project leveraging volunteering\".\nI can imagine, for example that\u00a0\"Schools supporting cooperativism\" is\u00a0mapped\u00a0well by\u00a0@T\u00f3pio activities. So some areas could be better covered than others. Should we rely on the stories posted here to make those kind of connections?\u00a0\n","comment_id":"24254","post_id":"6713","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, September 6, 2016 - 12:05","group_id":"0"}},{"node":{"title":"Sure, come!","content":"\nHi @Laurent dUrsel nice to meet you, I'm one of Yannick's and Nadia's colleagues, coming to Brussels for the workshop.\nIndeed, the dates have changed so this workshop is the only one, and I'm sure you are welcome to join anyway. Looking forward to meet you!\n","comment_id":"24251","post_id":"6685","user_id":"32","parent_comment_id":"24227","creation_date":"Tuesday, September 6, 2016 - 11:31","group_id":"0"}},{"node":{"title":"I see similar things","content":"\nI see people in today's fairly young\u00a0generations building professional paths along these lines. One of the latest political party in Romania running for national elections is a formerly local political party founded by civic activists. Now they're going national, after the founder has seen 25% support in the local elections. However it looks like titanic work, their lack of\u00a0experience shows many times, and funding missing.\u00a0The road is uncertain, but attests to the idea\u00a0above.\u00a0\nAlso, my story of a grassroots\u00a0innovation in the\u00a0medical system which a few years later contributed to the founder\u00a0being appointed Minister of Health also makes the case.\n\u00a0\n","comment_id":"24248","post_id":"6678","user_id":"32","parent_comment_id":"24230","creation_date":"Tuesday, September 6, 2016 - 10:42","group_id":"0"}},{"node":{"title":"Vernacular language, platforms, and context","content":"\nMoshimoshi folks,\nI think the work you are doing is great. I am an anthropologist who studies young people's practices on the internet, and one of the projects I am working on wants to understand how users on Tumblr use the space for solidarity and resistance, to share resources both good (i.e. recovery) and bad (i.e. relapse, hiding evidence of self-harm).\n\nIt strikes me that the language of \"shit happens\" is not only gendered and culturally-specific, but also speaks to a segment of young people who are able to articulate their hardship and agony through humour - unforunately, this may not be a language accessible or comfortable for all.\n\nIt would be great to see how your team will approach different internet\/social media platforms and uncover the different cultural norms each one has with regards to expressing thoughts about mental health (i.e. nice images but cyptic captions on Instagram? secret groups on Facebook but not public status updates? anonymous Tumblrs with all-out honest confessions?) Looking forward to reading more on this. Good luck!\n","comment_id":"24247","post_id":"6510","user_id":"8951","parent_comment_id":"0","creation_date":"Tuesday, September 6, 2016 - 10:33","group_id":"0"}},{"node":{"title":"Dear all","content":"\nDear all\nI spoke about this project also with other collegues\u00a0that work\u00a0in Fondazione Don Gnocchi (english presentation). Maybe someone can contribute to this project.\n","comment_id":"24224","post_id":"6667","user_id":"8807","parent_comment_id":"0","creation_date":"Tuesday, September 6, 2016 - 09:31","group_id":"0"}},{"node":{"title":"Giving back to floor to those who act","content":"\n@Noemi, My two cents about your questions. The ethical suffering can occur in any organization where it is required to do things that are too far from what actual work should look like in the eyes of the concerned people who are passionated about what they do.\nI've observed such situations in not for profit AND in for profit organizations even though the purpose and the values behind the organization were sensefull for people. It is about the meaning of the work to be done and the way it is asked.\nIndeed distributed decision making processes\u00a0(cf the integrative decision making process), spaces where people can share practices in order to improve them (which supposes that they have an influence on them),\u00a0the autonomy of each team and individual in his\/her area of competence and responsibility\u00a0(where each person\u00a0is sometimes leader\u00a0and sometimes follower)\u00a0combined with a results-oriented work process (instead of an effort-oriented culture giving more credit on hours spent then on results) are cornerstones\u00a0to move forward in the right direction.\nWhat is meant by heath at work ? Do we speak about fitness,\u00a0yoga and mindfulness ? If so, it is just an approach to relieve people and allow them to go on in an unsatisfactory environment. If it comes on top of the characteristics I mentioned\u00a0hereabove, it\u00a0will be the ice on the cake.\nLast but not least, working for a purpose-led\u00a0organization that strives for a better world will surely help at the condition that the way this organization works is consistent with its aspiration.\n","comment_id":"24245","post_id":"6678","user_id":"8389","parent_comment_id":"0","creation_date":"Monday, September 5, 2016 - 17:27","group_id":"0"}},{"node":{"title":"\"giving back the floor to those who act\"","content":"\n@Philippe Drouillon welcome back! This ethical suffering idea of yours reads really interesting, I can see your point and will try to add something to it.\nBy new ways of giving back the floor to doers, do you mean new decision making models? Or more tolerance for the doers in an organisation run in traditional way, a way of compromising?\u00a0\nOur community conversations so far mention burnout in\u00a0entirely\u00a0new kinds of\u00a0organisations growing from bottom up movements. You'd say these new orgs\u00a0could be\u00a0better candidates for diminishing that tension and ethical conflict. I myself am an exhibit of that.\u00a0But you also see people like\u00a0@marcoclausen reporting cases of community activists lost in simply too many requirements which they hadn't signed up for.\u00a0\u00a0They come with the \"job description\" so to speak, especially in a non-sustainable environment where you have to compensate for roles you can't afford to pay for.\u00a0So you have cases of burnout\u00a0because of simple overwork,\u00a0even with passsion and alignment between what is required and what you want to do.\nCurious, from your experience of working with both co-ops and more traditional\u00a0businesses:\u00a0is sustainability of an organisation correlated with\u00a0healthiness of work? Here I\u00a0mean\u00a0the quality of what it produces, its impact. Maybe if there were some roadmaps or a system of sustainability\u00a0rewards that come with keeping healthy at work, at\u00a0the expense of some other things, we'd get better at moving our work forward.\n","comment_id":"24244","post_id":"6678","user_id":"32","parent_comment_id":"24157","creation_date":"Monday, September 5, 2016 - 17:07","group_id":"0"}},{"node":{"title":"Dramatherapy and other activities suitable?","content":"\nHey, this village\u00a0reads like a novel approach to mental wellbeing and its openness in the sense of free choice - \"in 8 days can experience nine different approaches in order to arrive at what is the most compatible with their own interests\".\u00a0I\u00a0\u00a0am wondering what exactly people do during the session - is dramatherapy happening or other sorts of activities? I'm reading on your English language\u00a0website that you also did music therapy, playtherapy,\u00a0therapeutic horseriding..? Did those work out the way you envisioned?\nPing @Alex Levene for his interest in healthcare + arts, and @Thom Stewart because he runs a similar pilot experiment in Ireland - opening up practices in psychoterapy to new elements, mostly community based.\n","comment_id":"24243","post_id":"6705","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 5, 2016 - 16:29","group_id":"0"}},{"node":{"title":"Registered too.","content":"\n@Alberto Are you ok to give the 1:2h talk presenting the project challenge and expected impact, and activites going on?\n@Costantino\nDo you still plan to participate?\nChallenges: have a look\u00a0on the Hacking Health Bordeaux website.\nDoes WeMake still plans to submit a challenge? UBx will submit one around designing UI to navigate discussion forums, find the most relevant people w.r.t. to some topics, etc. @Alberto: would you like to join this challenge? We will probably provide (anonymized) data extracted from the opencare platform.\n","comment_id":"24241","post_id":"6041","user_id":"6399","parent_comment_id":"23769","creation_date":"Monday, September 5, 2016 - 16:18","group_id":"5954"}},{"node":{"title":"Registered too.","content":"\n@Alberto Are you ok to give the 1:2h talk presenting the project challenge and expected impact, and activites going on?\n@Costantino\nDo you still plan to participate?\nChallenges: have a look\u00a0on the Hacking Health Bordeaux website.\nDoes WeMake still plans to submit a challenge? UBx will submit one around designing UI to navigate discussion forums, find the most relevant people w.r.t. to some topics, etc. @Alberto: would you like to join this challenge? We will probably provide (anonymized) data extracted from the opencare platform.\n","comment_id":"24241","post_id":"6041","user_id":"6399","parent_comment_id":"23769","creation_date":"Monday, September 5, 2016 - 16:18","group_id":"5954"}},{"node":{"title":"Activities and tools you use in and outside schools","content":"\nNice to meet you Vivian at\u00a0@T\u00f3pio, and thanks for showing these beautiful pictures! I suggest we show them when giving your project a shout in the network.\nYou mention various educational tools for \u201cplacemaking\u201d.\u00a0Do\u00a0all your activities in the project involve public art of some sorts? Or do\u00a0the kids\u00a0learn other ways of\u00a0engaging with\u00a0the landscape?\u00a0\n\u00a0\n","comment_id":"24240","post_id":"6710","user_id":"32","parent_comment_id":"0","creation_date":"Monday, September 5, 2016 - 15:19","group_id":"0"}},{"node":{"title":"Milestones that changes history","content":"\nThis looks like one of those really simple things that improves the world. \u00a0Astonishing little things.\nLike this one:\u00a0\"ERADICATING POLIO FROM THE SURFACE OF THE EARTH\". I'll donate now, everybody please do the same now.\nAfter UNICEF has ended polio, could they be using your project?\n","comment_id":"24239","post_id":"6674","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, September 5, 2016 - 14:57","group_id":"0"}},{"node":{"title":"The gap","content":"\nHi Alberto!\nThe two main reasons are the following:\n- many (not to say most of\u00a0the) players join consortia to submit proposals for EU funding, looking just for either cash, or for a way to complete \"deliverables\" with the minimum effort required. This attitude does not deliver actual usable results\n- Most researchers are not \"market-savvy\". Most of the times they think that, since a technology exists, the problem is solved. But nothing is farther than the truth! Turning a technology into a product that solves a problem,and creating a supporting community is an exciting but difficult venture!\u00a0\u00a0\u00a0\nThat's the gap we found...\n","comment_id":"24238","post_id":"6699","user_id":"8936","parent_comment_id":"24223","creation_date":"Monday, September 5, 2016 - 13:57","group_id":"0"}},{"node":{"title":"Thanks!","content":"\nSo this is a cheap herbal remedy. It grows really well in these tropical regions, and quite fast too. So it does not take up a lot of cost in production, except for its processing which could cost quite a bit. But this advantage allows us to produce en masse and a cost efficient rate, so we are able to give it out to the public at incredibly cheap prices - cheap enough to have daily supplies\u00a0affordable\u00a0by just anyone. Since these are teas in tea bags, it makes it even better.\n","comment_id":"24236","post_id":"6674","user_id":"8927","parent_comment_id":"24229","creation_date":"Monday, September 5, 2016 - 10:41","group_id":"0"}},{"node":{"title":"Thanks, Noemi!","content":"\nHopefully! :) It's an interesting area to look into.\n","comment_id":"24235","post_id":"6674","user_id":"8927","parent_comment_id":"24207","creation_date":"Monday, September 5, 2016 - 08:18","group_id":"0"}},{"node":{"title":"Now I am also here","content":"\nHello,\nI also joined the discussion. Will try to describe how we started and what we are doing a bit more in details and will send it to you as soon as possible. Like the community here. Will check and read about the projects and share them with the world :)\n","comment_id":"24233","post_id":"6514","user_id":"8950","parent_comment_id":"24186","creation_date":"Sunday, September 4, 2016 - 21:47","group_id":"0"}},{"node":{"title":"Shift away from political activism","content":"\nNice input from Ginette and valid points.\nLast week I had several conversations with philosophy friends of mine who noted the same in their research or otherwise. They made some interesting points.\u00a0I tried to reconstruct them, but there might be some holes in it.\nMost 'activism' today is done by do-ers. Bottom-up initiatives that took it upon themselves to solve problems that governments should take care of.\u00a0They noted that this shift to just getting your hands dirty and\u00a0not\u00a0wait for\u00a0government action\u00a0is actually quite\u00a0a neo-liberal way of solving problems.\nThe\u00a0ideal of May '68 has become ingrained in the way the mainstream thinks.\u00a0The loss of faith in government and institutions has become part of a normal way of thinking. Management and corporations have adopted it in a way: they want to get\u00a0rid of the old and slow processes, they want radical disruption asap\u00a0and would like as few interventions by government\u00a0as possible. Government is mainly seen as an obstacle at this point.\nBottom-up initiatives follow the same reasoning to a large extent. Government is one of the obstacles to be overcome, because they're perceived as ingerently part of the problem, almost an external factor that is unchangeable. But they have to do it\u00a0with less means,\u00a0less people and less power (leading to the burnout problem).\u00a0Additionally, the whole neo-liberal side\u00a0will see these projects and initiators as 'one of them', because of the shared 'entrepreneurial activism'. For an outsider, the difference between both fades.\nOne of their conclusions was that there is a\u00a0need for political activism by these bottom-up activists right now, rather than only acting boots on the ground. Otherwise real systemic change may not follow, as politics today is mainly politics for the sake of politics, heavily influenced by big economy.\nWhat do you think about this?\n","comment_id":"24230","post_id":"6678","user_id":"8889","parent_comment_id":"0","creation_date":"Saturday, September 3, 2016 - 11:22","group_id":"0"}},{"node":{"title":"Nice going!","content":"\nHello Ivan, what a great research project you have going on! If you can push the research further and pour it into some kind of organisation for distribution, I bet it would have a large impact.\nHow do you think you could make\u00a0the tea reach the people who need it most but can't afford it, and avoid it only reaching the happy few (like\u00a0the often prosperous superfood buyers as Noemi mentioned) who don't really\u00a0need it but can afford it?\n","comment_id":"24229","post_id":"6674","user_id":"8889","parent_comment_id":"0","creation_date":"Saturday, September 3, 2016 - 10:51","group_id":"0"}},{"node":{"title":"That's the first (strange) word Nadia uttered: SHWASHLOCK!","content":"\nI mean Nadia El-Immam, of course. And I think, dear Alberto, that a kind of SHWASHLOCK-DoucheFLUX partenership would be welcome... in the future. Because right now we are mainly running to get the 400.000 \u20ac missing to finsih the renovation of the future DoucheFLUX building. But, yes, the words of Donald Paschal you quoted are very inspiring. Thanks ! Laurent\n","comment_id":"24228","post_id":"6685","user_id":"8932","parent_comment_id":"24156","creation_date":"Saturday, September 3, 2016 - 09:13","group_id":"0"}},{"node":{"title":"ok, withe great pleasure, but not the all day !","content":"\ndear Yannick, sorry for this late answer : you were my very first message on this plateform... Thank you for the invitation, it would be a pleasure for me, of course, to join, but a nephew has the terrible idea to get married this 24th of September, so I'm afraid I'll have to leave around 1 PM. Is it still possible ? And does this mean that the 24th of September replaces the 10-11 September worshop, Nadia spoke me about ? Yours Laurent\n","comment_id":"24227","post_id":"6685","user_id":"8932","parent_comment_id":"24138","creation_date":"Saturday, September 3, 2016 - 09:04","group_id":"0"}},{"node":{"title":"Interesting","content":"\nThanks for the vote of confidence, @Vassilis Giannakopoulos - SciFY \u00a0. And thanks also for this great experience.\nI was trained as an economist, and I find it easiest to think about what you do in terms of fixing a market failure. In a perfectly functioning market,\u00a0the stuff that is only a few months away from being productive would be immediately picked up by somebody who spots an opportunity for gain.\u00a0\nWhat do you think causes the market failure? Why is it that you can look at a paper and see the opportunity, while others cannot?\u00a0\n","comment_id":"24223","post_id":"6699","user_id":"34","parent_comment_id":"0","creation_date":"Friday, September 2, 2016 - 16:21","group_id":"0"}},{"node":{"title":"Training communities","content":"\nHi @concrn, welcome! I'm Noemi, and my own cases of\u00a0irrelevant (at best)\u00a0or aggravating\u00a0(at worst) situations appearing in connection to system brutality are listed\u00a0here.\nI like your solution - training communities\u00a0to compassionately respond to their own crises before police get involved. \u00a0How do you do it? Is it through your own example or do you have activities to teach citizens that?\nIn Bucharest there is a long time organisation working with drug addicts and sex workers on the streets, and they are so hung up in the very basic aid of providing IDs for these people or getting them into the social security state service provision, that they can't really do anything else, that's how hands on\u00a0and exhausting\u00a0that task is.\u00a0And while they could need help, it's very time consuming to train others how to deal with people on this dramatic edge - because of the emotional investment and very specific set of skills needed.\nThey do, however find new ways of helping those in need, but incipient - car wash social businesses, or a social restaurant providing some jobs. Anyway, titanic work!\n","comment_id":"24215","post_id":"6703","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 2, 2016 - 13:53","group_id":"0"}},{"node":{"title":"Status, Next steps & join the party","content":"\nWe (+Costantino, +Alexander Shumsky) are working very hard on parallel activities.\nA. We are about to establish\u00a0the first prototype session (prototyping the flow of encounters in WeHandU).\u00a0A1. We are\u00a0contacting\u00a0candidate participants (people with tetraplegia\/multiple sclerosis or stroke).\nB. Grant applications (we already got swedish, local and\u00a0other funding + materials) - preparing 100k request ;-)\nC.\u00a0Finishing instructables for solution for\u00a0the hand.\u00a0\nD Launching the \u00a0WeHandU.IT site\nAny participation would be great fun (as in functional)\u00a0for all. Especially on public relations (A1) management (B) and networking (D)\n\u00a0\n\u00a0\n","comment_id":"24209","post_id":"6667","user_id":"8837","parent_comment_id":"0","creation_date":"Friday, September 2, 2016 - 10:57","group_id":"0"}},{"node":{"title":"tried to involve the LEDHA","content":"\nTanks +Francesco Maria ZAVA. What happened when you '\u00a0had tried to involve the LEDHA'?\u00a0I had a look on the site. \u00a0I't really would be a great help I you, or someone (+Costantino, +Alexander Shumsky) could inquire.\n","comment_id":"24208","post_id":"6667","user_id":"8837","parent_comment_id":"24202","creation_date":"Friday, September 2, 2016 - 10:01","group_id":"0"}},{"node":{"title":"Ivan, thanks!","content":"\nI learned something new today, and it didn't take many clicks on the Internet to see that moringa is being called a superfood. Hopefully you'll break new ground with herbal remedies as affordable treatment, and not just in Africa!\n","comment_id":"24207","post_id":"6674","user_id":"32","parent_comment_id":"0","creation_date":"Friday, September 2, 2016 - 08:20","group_id":"0"}},{"node":{"title":"we dont encounter language barriers","content":"\nThey all seem to speak english.\nSometimes we have beginners, but we have other refugees around who help out.\n\n...at least when it comes to teaching and IT skills.\nSadly, in germany many people do not speak english well and feel very uncomfortable when speaking it, so they rather dont speak it and\nsend everyone who doesnt speak good german home.\n\nWe hope teaching digital skills will help them find remote jobs or real jobs abroad.\n","comment_id":"24205","post_id":"6514","user_id":"8907","parent_comment_id":"24186","creation_date":"Thursday, September 1, 2016 - 23:17","group_id":"0"}},{"node":{"title":"No exactly clinical expertise, but very interesting link!","content":"\nHi\n\nSome time ago, just before the OpenCare Project's start, I had tried to involve the LEDHA (http:\/\/www.ledha.it\/) that, as reference body for the associations of disabled people, could then and could today contribute to the construction of competent connections as parties concerned for the development of \"WeHandU\". I believe that the proposal to Rune can actively engage these people.\nOf course I agree on the role of WeMake as a reference point and work space! : D\n","comment_id":"24202","post_id":"6667","user_id":"8523","parent_comment_id":"0","creation_date":"Thursday, September 1, 2016 - 12:45","group_id":"0"}},{"node":{"title":"Who do we know in Milano in medical care\/ practice?","content":"\nI am hoping one of you can help connect Rune and his team to practitioners and patients interested to volunteer to explore how\u00a0assistive technology can move forward and into use?\u00a0@Rossana_Torri, @Franca, @Francesco Maria ZAVA, @Alberto Simonetti ?\n","comment_id":"24201","post_id":"6667","user_id":"32","parent_comment_id":"24180","creation_date":"Thursday, September 1, 2016 - 12:08","group_id":"0"}},{"node":{"title":"2 videos on Programm HAPPIER","content":"\nhttps:\/\/www.youtube.com\/watch?v=EgAY_TddM2k\nhttps:\/\/www.youtube.com\/watch?v=Or_a8w-uyeQ\n","comment_id":"24198","post_id":"6684","user_id":"8929","parent_comment_id":"0","creation_date":"Wednesday, August 31, 2016 - 19:48","group_id":"0"}},{"node":{"title":"http:\/\/www.aal-europe.eu","content":"\nhttp:\/\/www.aal-europe.eu\/projects\/motion\/\n","comment_id":"24197","post_id":"6684","user_id":"8929","parent_comment_id":"24196","creation_date":"Wednesday, August 31, 2016 - 17:52","group_id":"0"}},{"node":{"title":"Maybe can this interesting","content":"\nMaybe can this interesting too?\nhttp:\/\/www.ipp.eu\/en\/topics\/health-and-well-being\/siel-bleu-project-fonds-danone-pour-lecosysteme\/\nhttp:\/\/www.ipp.eu\/wp-content\/uploads\/2015\/01\/n16-notesIPP-january2015.pdf\n","comment_id":"24196","post_id":"6684","user_id":"8929","parent_comment_id":"24190","creation_date":"Wednesday, August 31, 2016 - 17:51","group_id":"0"}},{"node":{"title":"In my opinion te cases","content":"\nIn my opinion te cases against Uber and Airbnb are valid even if I love the ideas behind them. Uber is getting sued for not providing their drivers with essential support: health care, insurance, repair\u00a0costs while being free to bring down the prices. And as Google is joining the race, prices will go down. Another problem with Uber is its hunger for monopolizing the markets around - which hopefully will be stopped as well, although this will happen most likely thanks to other giants.\u00a0\nAbout Airbnb, you are entitled to rent a spare room where you live - the case is against fake sharing, de facto homes and apartments that were emptied so the owners would make money on short term rentals. This changes the landscape of the city and has huge, negative effects.\u00a0\nprobably the difference between scaling and monopolizing markets is one of the criteria here. These startups lost the reasonable idea of scale and infringed territories. Hotels and taxi corporation will protect their share and lobby against these companies, which doesn't need to be good in results. But these battles amplified processes in the urban spaces which could have been happening more quietly before, and that's good. And made people think about sharing and new ways of the economy. Built trust.\u00a0\nI think the key here is not to let one giant to emerge, but to allow organic replicas to provide similar offers in their environments, without overarching the whole globe with a great huge fix. If the efforts remain decentralized, scattered, but also adapted to local needs and problems, I can't see a way in which this model would be bad (of course. pharmaceutical companies and other parties interested in ridiculing anything's that out of the system will try to fight it and there will be a need of great success stories that can be told to the people in order to change their attitudes towards alternative approaches to care. Maybe it's not even too late, herbal medicine didn't completely disappear...) or harmful. I believe there should be manuals and ways to ensure people providing help are capable of doing it, however, what kind of manuals and to what extent, I have yet no idea.\u00a0\n","comment_id":"24194","post_id":"6304","user_id":"678","parent_comment_id":"22831","creation_date":"Wednesday, August 31, 2016 - 16:45","group_id":"0"}},{"node":{"title":"Yes, you're right. Although","content":"\nYes, you're right. Although some of my dermatologists I've seen plenty of times over years - they just kept on trying things on me, instead of looking for some other reasons why their treatment didn't work (probably they didn't address the issue at its core). Anyhow, then I have learned an interesting thing about prescribing people tests. It turns out in Poland each doctor is given a number of tests he can prescribe to people: blood, sugar, more sophisticated ones. BUT, if the doesn't spend them all, he gets PAID for each test he didn't give out. Anyway, it's just one of the pathologies of the system I've discovered - as my family is full of doctors, every time I open the discussion I am more and more stunned by how badly it was designed.\u00a0\nI am not enough of a sample I am afraid - I could only bring a couple of stories:)\n","comment_id":"24193","post_id":"6304","user_id":"678","parent_comment_id":"24183","creation_date":"Wednesday, August 31, 2016 - 16:04","group_id":"0"}},{"node":{"title":"Hi Noemi,","content":"\nHi Noemi,\nMaybe is this publication after the Get Physical programm part of the answer to your question: http:\/\/ec.europa.eu\/sport\/policy\/preparatory-actions\/documents\/045-0565-siel_en.pdf\nIt was the last programm I followed during my periode at Gymsana. We were preparing a new programm at the end. Innoviris has launched a call to action and we introduced a project that names Meet Move. I can ask more info to my old colleges\n","comment_id":"24190","post_id":"6684","user_id":"8929","parent_comment_id":"24134","creation_date":"Wednesday, August 31, 2016 - 14:25","group_id":"0"}},{"node":{"title":"Also: studying interventions for increased empathy","content":"\nI would be interested to see if some interventions can trigger more emphatetic treatments and how that affects patient\u00a0wellbeing. Things like \"Hello my name is...\" campaign for practitioners to\u00a0be more humane, or the other day I was reading about inserting empathy in the medical studies -\u00a0\"What Medical Residents Learn from Art Museums\". \u00a0These things\u00a0don't feel too sophisticated things to do for apparently very high returns. We all seem to\u00a0agree that \"more empathetic\" is better for patients wellbeing, not just satisfaction which is more obvious.\u00a0\n","comment_id":"24187","post_id":"6304","user_id":"32","parent_comment_id":"24185","creation_date":"Wednesday, August 31, 2016 - 10:47","group_id":"0"}},{"node":{"title":"\"Work is the best pathway to connect newcomers with locals\"","content":"\nNice to meet you @serapath, and what a good match with Franca.\u00a0\nShe was saying elsewhere, in her own words, that language is key to connect newcomers to the new setting, but also arguing for activities like the ones you propose. Do you manage to break throguh the language barrier, or have people helping with\u00a0that? Either way, well done, it seems there's a lot you have going on and quite some activity (checked your live chat, great one\u00a0hehe).\n","comment_id":"24186","post_id":"6514","user_id":"32","parent_comment_id":"24176","creation_date":"Wednesday, August 31, 2016 - 10:25","group_id":"0"}},{"node":{"title":"Great idea","content":"\n... and great discussion. Something to think about for the second year of OpenCare. A collaborative map of waiting vs. being given health care and empathy? Nice artifact.\nThe idea of \"rules instead of Hippocratic oath => bad\" is intuitively very appealing. I think @teirdes has some structured thoughs and experience.\u00a0\n","comment_id":"24185","post_id":"6304","user_id":"34","parent_comment_id":"24182","creation_date":"Wednesday, August 31, 2016 - 10:24","group_id":"0"}},{"node":{"title":"ask you to try it out","content":"\n@Natalia Skoczylas, as of the hypothesis of 30% errors in my comment, I understand (and know) the 'try it out' stuff. I'ts ok I think. The problem is that as it is extremely valuable information gets lost. Consider two cases:\nA: It worked \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0B: It did'nt work.\nWas it due to chance or attributed to treatment?\nIf everybody reported the result systematically it would be easy to identify best treatment. Unfortunately this info gets lost and nobody learns. This leaves it to the bias of where money gets invested for clinical trials. Another reason for a \u00a0review system.\u00a0\n\u00a0\n\u00a0\n","comment_id":"24183","post_id":"6304","user_id":"8837","parent_comment_id":"24177","creation_date":"Tuesday, August 30, 2016 - 23:15","group_id":"0"}},{"node":{"title":"Extremely interesting","content":"\nHmm, @Natalia Skoczylas, I'm impressed about your international experience. It could be extremely interesting analyzing those 8 countries, comparing them with other peoples experiences (I've only lived in DK,UK,NL & IT). With the free movement of labour and free choice of public health provider (HCP)\u00a0it could be interesting to have a sort of 'google maps' scoring system of satisfaction. People could score the on a couple of dimensions ....is that networking stuff @Alberto?\n","comment_id":"24182","post_id":"6304","user_id":"8837","parent_comment_id":"24177","creation_date":"Tuesday, August 30, 2016 - 23:04","group_id":"0"}},{"node":{"title":"Right on","content":"\nThanks, @Alberto. You coined it perfectly '\u00a0This is about patients\u00a0being\u00a0researchers, and viceversa'. Actually we try to avoid terms like patients (https:\/\/en.wiktionary.org\/wiki\/patient) but prefer participants, mentors and facilitators differentiating the role of engagement.\n","comment_id":"24181","post_id":"6667","user_id":"8837","parent_comment_id":"24120","creation_date":"Tuesday, August 30, 2016 - 22:50","group_id":"0"}},{"node":{"title":"Precision","content":"\nThanks @Natalia, re 'volunteer their time to work on their research' \u00a0I'd like to point out that we do not consider it research, rather a quest. The research has been done, it's about applying the results and create value for the comunity.\n","comment_id":"24180","post_id":"6667","user_id":"8837","parent_comment_id":"24175","creation_date":"Tuesday, August 30, 2016 - 22:42","group_id":"0"}},{"node":{"title":"Thank you!","content":"\n@Noemi, Thank you for clarifying that! I would appreciate that list, so I could reach out directly.\u00a0\n","comment_id":"24179","post_id":"6670","user_id":"8914","parent_comment_id":"24146","creation_date":"Tuesday, August 30, 2016 - 21:39","group_id":"0"}},{"node":{"title":"@Rune, I've lived in 8","content":"\n@Rune, I've lived in 8 countries in the past few years, mostly in Europe. I've been to doctors in all of them. And there were no computers to assist the doctors, mostly they had a person to do the written documentation. Which didn't change the fact that even if they had theoretically more time to spend on approaching me as a patient, they would mostly limit their help to examination and writing a prescription. Rarely they bother talking to me and try to figure out the reasons for the problem. It happened a lot with dermatologists, who basically just give you a prescription for some external treatment, very expensive, and ask you to try it out. None of their recommendations ever helped me.\u00a0\nLast times were absurd to an extent that the doctor wouldn't even tell me what he thinks is wrong until I asked - and then the questions about medication followed, with an ironic response: oh, so you're interested in drugs?\u00a0\nI don't know what these doctors are actually frustrated with. I guess an inhumane amount of patients to see every day might be one of the reasons. Still, I would suggest there is a huge lack of empathy training during their studies and work, and maybe this is why they're incapable of approaching their patients in a more personal, compassionate manner.\u00a0\n","comment_id":"24177","post_id":"6304","user_id":"678","parent_comment_id":"24029","creation_date":"Tuesday, August 30, 2016 - 19:55","group_id":"0"}},{"node":{"title":"great :-)","content":"\nthx.\nWe currently have around a half a dozen refugees involved in our e-learning program that actually learn and some more in the community, but we are pre-launch.\nThe refugeeswork.com platform has already ~400 refugees signed up and regular activity.\nRefugees dont need any skills to start. we start with \"whats a browser\" and \"how to create an email account\" and progress to how to build your own web app over the course of ~120 videos for now. More will follow soon to diversify what can be learned.\nThe main results are refugees who started to build their portfolio pages and now know some programming and design. Other results include refugees who managed to get in contact with locals for paid gigs and\/or voluntary activities to get to know locals.\n","comment_id":"24176","post_id":"6514","user_id":"8907","parent_comment_id":"24145","creation_date":"Tuesday, August 30, 2016 - 17:34","group_id":"0"}},{"node":{"title":"@Noemi, @Alberto - I\u00a0had a","content":"\n@Noemi, @Alberto - I\u00a0had a short conversation with @Rune and @Alexander Shumsky\u00a0yesterday. Besides discussing OPENandchange, I was also asked to try and help to find physiotherapists and patients who'd like to volunteer their time to work on their research. Do you know of anyone in the community who could be of help here? Or a good way to connect? They really want to have people from Milano and around, in order to be able to work hands on and regularly with them.\u00a0\nLet me know if you have a good idea;)\n","comment_id":"24175","post_id":"6667","user_id":"678","parent_comment_id":"0","creation_date":"Tuesday, August 30, 2016 - 17:33","group_id":"0"}},{"node":{"title":"Great debate","content":"\nKudos @Woodbinehealth and @maymay .\n","comment_id":"24168","post_id":"6644","user_id":"34","parent_comment_id":"24165","creation_date":"Tuesday, August 30, 2016 - 10:41","group_id":"0"}},{"node":{"title":"Connecting people with people?","content":"\nHey @Rune sorry for the slow response, somehow I had managed to miss this. So Amir mentioned two things which may be helpful. \u00a0You reminded me I have to post the notes from the conversation withwith him. Doing it now!! will post a link to it here later today.\n","comment_id":"24167","post_id":"6649","user_id":"45","parent_comment_id":"24049","creation_date":"Tuesday, August 30, 2016 - 09:06","group_id":"0"}},{"node":{"title":"Challenge on mental wellbeing","content":"\n@Maria yes! The challenge itself is around mental wellbeing, and people (like Pauline above) write about\u00a0connections they find interesting or helpful\u00a0projects.\n","comment_id":"24166","post_id":"6388","user_id":"32","parent_comment_id":"24112","creation_date":"Tuesday, August 30, 2016 - 08:03","group_id":"0"}},{"node":{"title":"Thanks for the answer, ","content":"\nThanks for the answer, @Woodbinehealth . :) Your answer helped me understand the position of Woodbine within its context. I think building relationships with existing institutions can be a double-edged sword. It can be valuable, but it can also be a trap (a sinkhole of money, time, energy, etc.). I hope there is still room for discussing how to meet basic needs \"outside\" of the system, or at least\u2014as there seems to be\u2014a willingness to explore how to support doing that from the perspective of additional care-giving such as you're already doing. Anyway, thanks for clarifying.\n","comment_id":"24165","post_id":"6644","user_id":"8892","parent_comment_id":"24164","creation_date":"Tuesday, August 30, 2016 - 01:33","group_id":"0"}},{"node":{"title":"Basic Needs","content":"\n@maymay, you bring up a great point. \u00a0One aspect of what we're trying to do is balance the desire for a new world with the recognition of the reality of the world we live in. \u00a0That we can strive for prevention, but we must address the material reality of how people live. \u00a0The battle to live paycheck to paycheck is very real here in the city, especially for us as a collective. \u00a0But many of us are sheltered from things like homelessness and hunger in a more acute way because of our social privilege, education, social status, etc. \u00a0Not to say that members haven't experienced that, but on the whole, we are somewhat privileged. \u00a0We struggle with the more care driven models of soup kitchens, shelters, NGO-type aid groups because 1) we don't have the infrastructure to develop such aid and 2) we don't want to create another area of dependency, where the NGO model fills a hole in a society. \u00a0So likely, we will have to create relationships with such institutions who can and are doing that good work, but that we will continue to straddle the line of revolution. \u00a0For example, I work at one of the public hospitals in the city and regularly help people navigate that system. \u00a0But at the end of the day, we don't believe these systems have the answer we are looking for, similar to what @Alberto was talking about in regards to the Amish. \u00a0Thanks again for the great discussion. \u00a0And @markomanko, agree that we have to study the idea of both being within the system and out. \u00a0Here in the US, the professionalization of many specialities places it in a realm outside of normal access, ie through insurance companies, inhumane public institutions, high priced private centers. \u00a0An on-going struggle fer sure!\n","comment_id":"24164","post_id":"6644","user_id":"8896","parent_comment_id":"0","creation_date":"Tuesday, August 30, 2016 - 01:25","group_id":"0"}},{"node":{"title":"Great resource","content":"\n@Nadia @maymay, Thanks for all the pings and sorry for the delay. \u00a0This seems like an amazing tool. \u00a0I think it could be helpful for us to create a larger community of resources. \u00a0I'll message you all privately to learn more about how we could apply it to the situation here. \u00a0And also to plan a potential visit\/event! \u00a0\n","comment_id":"24163","post_id":"6649","user_id":"8896","parent_comment_id":"0","creation_date":"Tuesday, August 30, 2016 - 01:12","group_id":"0"}},{"node":{"title":"Hit","content":"\nHi, @trythis, I did some research when my children were small. There are a number of patents (probably run out now) having excellent solutions. I think the solution is probably a two piece combination:\u00a0\n1 controlling unit\n2 disposable\/washable sensor\nAt the time I considered a simple humidity sensor (measuring the impedance in the diaper, but its only effective for urine. What is the current state of gas detectors? A small one that could detect some compound in feces?\n\u00a0\n","comment_id":"24162","post_id":"6672","user_id":"8837","parent_comment_id":"24154","creation_date":"Monday, August 29, 2016 - 22:58","group_id":"0"}},{"node":{"title":"I like  ecofriendly solutions ","content":"\nThe issue was another: Waste of resources due to untimely change and lack of timely change\nNone have to do with the type of Diaper ;-)\n\u00a0\n","comment_id":"24161","post_id":"6672","user_id":"8837","parent_comment_id":"24144","creation_date":"Monday, August 29, 2016 - 22:51","group_id":"0"}},{"node":{"title":"Very interesting!","content":"\nI'm very interested in what you're describing. I know a couple of people in the med field, but have a different background (materials) myself. Usually I can also bring something to the table though.\nOff the cuff a couple of pointers that you might find interesting:\n- Medical experience \/ learning in war and peace are somewhat different (perhaps you can borrow approaches as is convenient)\n- Over time (and hierarchy levels) there is also quite a shift in approach to matters (look up e.g. Florence Nightingale or Ignaz Semmelweis)\n- I think there is a lot in the medical field which is extremely bad to codify in(to) written language but can be learned face to face. I would think a \"social network of people who went through your problems\" would be useful particularly in regard to doctor-patient info responsibilities (the doctor is pressed for time and may not be able to relate to a patients situation as well as a \"veteran\" from the network).\n","comment_id":"24160","post_id":"6677","user_id":"6534","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 22:19","group_id":"0"}},{"node":{"title":"Nice points","content":"\nI can't really answer your question \"Is there some documentation that opensource software is more reliable compared to\u00a0proprietary code with a relevant approvals?\" as I am not aware of applicable metrics that do this with little\/no room for interpretation. It would be interesting what @Eireann Leverett can provide in those terms.\nAs for \" Honestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\u00a0edited by someone with an obfuscated name\u00a0?\": Well who decides that Windows Millenium or Windows 8 is not beta anymore, and what are the programmer's names? Not sure, but couldn't you beta-test in a dummy, an animal, or even a human (in a less sensitive location) before you declare it a finished product?\nOf course I agree that such probing questions need to be asked, and you can't expect to automagically transport some (but not other) features of one field into another field with a very different history etc. and expect to be able to predict the outcome.\nHowever, regulations have a tendency of accumulating and not always for the right reasons, so critical questions from outsiders are in place, particularly in the medical field I would say. Also there is the issue of possibly not being able to support the current complexity of the domain in the longer term.\nLastly, I think work in the techno-medical-regulatory domain may help overcome indifference towards the consequences of technological choices, as illustrated in Alberto's comment.\n","comment_id":"24159","post_id":"6620","user_id":"6534","parent_comment_id":"24009","creation_date":"Monday, August 29, 2016 - 21:58","group_id":"0"}},{"node":{"title":"Late to the party","content":"\nHi @Tomma I wrote you a PM. If there still is something I can perhaps help with give me a ping. Regarding tools there are certain methods that use almost 0 tools but can still get a lot done. https:\/\/cocreate.localmotors.com\/nowbreakit\/epoxy-minimal-mess-small-footprint-approach\/\nEpoxy is not cheap (unless it is a day over shelf life - ask around at boat builders or wind power manufacturers, perhaps in Rostock) but it can get a lot of stuff done. If you put some glass fiber (ask the same people for scraps) on the cardboard honeycomb it becomes very strong (but only moderately so in compression).\nYou should not work where people live, and have good ventilation (wear glasses, gloves, read the fine print), but composites experience is very marketable, especially if you can work clean and precise.\nIs there magnetic stuff around (bed frames, parts of walls)? If yes you can buy a big batch of magnets (the strong ones are neodym) and use them to fix wall paper, fabric or similar. They can be pretty small and cheap and still get a lot done, also for improvised electronics.\nDo people use batteries a lot? Perhaps you can switch to rechargeable - with some help from Panasonic? You can build powerpacks for mobile electronics. A very basic kit will let you do a Repair Cafe and bring in more tools and parts (talk to Ifixit.com). A small amount of epoxy will also come in very handy there.\n","comment_id":"24158","post_id":"6389","user_id":"6534","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 18:29","group_id":"0"}},{"node":{"title":"Re one of the three areas mentioned by G. Bauwens - Burn Out","content":"\nOne main finding made by field researchers about burn out is that one of the main factors that leads people to burn out is \"ethical suffering\" (litteral translation of the original expression in French \"souffrance \u00e9thique\") and this before workload.\nWhat does that mean ? Stress often comes from a conflict of values between prescribed work and \"real\" work, \"real\" in the sense of\u00a0what really has to be done in a correct way.\nA large amount of professionals who get burnt out couldn't live anymore with the contradiction between what is asked and what should really be done. And I don't speak about\u00a0ethics from ideological point of view. Just the tension between what is asked and what true professionals believe should be done (eg : social workers in big institutions, engineers in industrial companies, nurses in hospitals,...). The fact that there\u00a0is no place anymore for true\u00a0dialogue,\u00a0exchanges and co-construction around their own practices worsened the situation.\nSo bringing \"real' work in the center of the operations\u00a0by giving back the floor to those who act is a way that is currently implemented in a few organizations to significantly reduce the risk of burn out. By organizations, I mean not-for-profit, for-profit or public organizations. None of them is immune to this illness...especially the not-for-profit ones like NGOs.\nAnd this is without mentioning the ethical conflicts that workers can have between their own values and those shown withing the organizations they work for. And this is another (big) story.\n","comment_id":"24157","post_id":"6678","user_id":"8389","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 18:28","group_id":"0"}},{"node":{"title":"SHWASHLOCK redux","content":"\nThis reminds me of one of my favourite networked computing stories: back in 1990, the City of Santa Monica (California) launched a service called SHWASHLOCK (SHowers, WASHing machines and LOCKers). The idea for this service had come from a bunch of residents, some of whom were homeless, hanging out on the city's Public Electronic Network (PEN). At the time, of course, there was no Internet: PEN was a civic network accessible locally. SHWASHLOCK is the first public service designed on a computer network that I know of.\nSanta Monica's libraries had terminals connected to the PEN, and some homeless residents\u00a0were using the libraries. This is how homeless and homed residents were able to come to share a common hangout, and design together a simple, but very useful service.\u00a0\nIt turns out that online spaces are quite good at removing some of\u00a0the social markers that make interaction across social groups so awkward (and more power to you, @Laurent_d'Ursel , for overcoming that awkardness!). In the words of Donald Paschal, one of the homeless residents:\u00a0\n\u201cPEN is a great equalizer. No one on PEN knew that I was homeless until I told them. After I told them, I was still treated like a human being\u2026 the most remarkable thing about the PEN community is that a City Council member and a pauper can coexist, albeit not always in perfect harmony, but on an equal basis.\u201d\nMore info on SHWASHLOCK and its implications for public participation online:\u00a0http:\/\/www.cottica.net\/2012\/08\/29\/the-computers-of-the-excluded\/\n","comment_id":"24156","post_id":"6685","user_id":"34","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 17:36","group_id":"0"}},{"node":{"title":"I also have ideas regarding","content":"\nI also have ideas regarding more efficient or senior friendly showering (hygiene) methods, mostly foam based.\nRecently I brainstormed for a self driving car mod (https:\/\/cocreate.localmotors.com\/RaMansell\/healthy-movement\/) that could work in rehab as well, so some ideas are still warm. I had actually proposed to make it incontinence friendly as well. :)\n","comment_id":"24155","post_id":"6672","user_id":"6534","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 17:28","group_id":"0"}},{"node":{"title":"I know people that left to diaper industry ","content":"\nand I know some profs that work in an appropriate sensor field (e.g. Petra P\u00f6tschke in Dresden).\nHit me if you'd like to sit down to brainstorm a little.\n","comment_id":"24154","post_id":"6672","user_id":"6534","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 17:20","group_id":"0"}},{"node":{"title":"MA, Studienfach Migration und Diversit\u00e4t in CAU","content":"\nIf you are interested, there is now University program called \"Migration and Diversity\" in this University: https:\/\/www.studium.uni-kiel.de\/de\/studienangebot\/studienfaecher\/migration-und-diversitaet-ma\nI found that out when discussing things with the people who help out at a refugee center close to there. There ought to be some mutual interest in some of the activities... apparently it is a new thing - so there is probably a lot of learning for everyone involved.\n","comment_id":"24153","post_id":"6514","user_id":"6534","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 17:08","group_id":"0"}},{"node":{"title":"Repair Caf\u00e9?","content":"\nYou could host a RC and perhaps keep some of the pieces for parts and training. Of course you can also encourage people to donate some semi-working things or decent enough tools (no one should work with shit tools!)\n","comment_id":"24152","post_id":"6514","user_id":"6534","parent_comment_id":"23532","creation_date":"Monday, August 29, 2016 - 17:03","group_id":"0"}},{"node":{"title":"Learn to write the wikipedia?","content":"\nI've made a draft outline for a German centered effort to do this with the help of the refugees:\n\n(download and rename to .pdf - I could not upload easily otherwise)\nHmm... didn't work :(\nPM me if you are interested.\n","comment_id":"24150","post_id":"6514","user_id":"6534","parent_comment_id":"23931","creation_date":"Monday, August 29, 2016 - 16:59","group_id":"0"}},{"node":{"title":"Some technical ideas","content":"\nIf you want to personalize with few resources - try making your own paint. I recommend you use non-toxic pigment (and still use masks - just to spread awareness), and there are a bunch of non-toxic to fairly harmless liquids to mix stuff into (e.g linseed oil*). You can get a lot done with mortar and pestle for personalization scale.\nOther things that help are fabrics with nice haptic properties (you can sew together patch-work style). Needle skills are nice to have anyway if you want\/have to live low budget. Just make sure you get good thread. Fabric will also improve overall acoustics.\nPull broken head-phones out of the trash and fix them (9\/10 are broken at the jack, you can fix them with almost nothing, if you are good you can re-use the solder that is already on them. Then you only need a lighter\/candle and e.g. some liquid adhesive and string to fix things permanently. A quiet atmosphere and my (home) sounds around me help my mood a lot.\nLEDs are another option for color personalization instead of paint. If you DIY, just make sure you understand what resistor you need. You will need one unless you do plug in LED-bands which are relatively expensive (but still not bad, you could also cannibalize them). If treated right LEDs will last forever though.\n*Not sure how well that works on particle board though. Epoxy is the solution that will always work (and can also be used to fix a lot of other stuff) but is potentially somewhat toxic, moderately expensive (if you buy a big just past shelf life bucket), and needs some know-how and tools to avoid a utter uncleanable mess. Hit me if you want more details.\n","comment_id":"24148","post_id":"6514","user_id":"6534","parent_comment_id":"23532","creation_date":"Monday, August 29, 2016 - 16:50","group_id":"0"}},{"node":{"title":"Nice, also if you want to do engineering...","content":"\nGet some fairly decent CAD skills without the cost. And share some of what you make with the rest of us. Onshape.com allows CAD straight from the browser (of a decent computer or notebook). Check out who is behind it, those are some of the CAD Urgestein folks, and everything is fully legit.\nYes, it is a free\/commercial program, but currently the deal is extremely fair.\nhttps:\/\/www.youtube.com\/watch?v=5asam5vmlr0\nHere is the nuts % bolts video, it is not exactly easy to learn from 0 with 0 help though:\nhttps:\/\/www.youtube.com\/watch?v=eZ4ZNLANFWg\n","comment_id":"24147","post_id":"6514","user_id":"6534","parent_comment_id":"23931","creation_date":"Monday, August 29, 2016 - 16:27","group_id":"0"}},{"node":{"title":"Nope, no direct group messaging I'm afraid","content":"\n@Shajara, the way to go is either let them know in public by posting another story - they receive notifications on email, or go to their profiles and message them via the Contact tab. I can send you a full list of their profiles. I\u00a0think this last option is the fastest.\n","comment_id":"24146","post_id":"6670","user_id":"32","parent_comment_id":"24137","creation_date":"Monday, August 29, 2016 - 16:25","group_id":"0"}},{"node":{"title":"Interesting!","content":"\nhello @serapath!\nThanks for sharing!\nwhat you're doing it's really interesting! I would like to know something more... how many refugees are already involved? Which are the main results? Refugees need to have particular skills to start?\u00a0\n\u00a0\n","comment_id":"24145","post_id":"6514","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 16:08","group_id":"0"}},{"node":{"title":"Or letting go for good..","content":"\nTrue to that. I suspect from how\u00a0you\u00a0approach this that the ecofriendly solutions are just smokescreen?\nI'm a bit swamped now, but if anyone is interested to go through numerous\u00a0existing sensor apps and see if there is something there.\n","comment_id":"24144","post_id":"6672","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 16:05","group_id":"0"}},{"node":{"title":"Learning from concrete wins or lost battles?","content":"\nI'm grateful to Ginette for her opinions and super curious to see if she has experienced victories too in her work, even small ones. In a conversation I had the other day with a friend well versed in NGO work and having quit, she mentioned something suprising to me: that for her it is the proper third sector having a chance of changing things, not the bottom up grassroots. So you see, all sorts of distinctions are being made, but I recognize the bottom line - the need for structured processes,\u00a0paths to access resources, influence etc.\nMy opinion is not worth much, in fact we can be right and agreeing\u00a0and still not go anywhere :-|\u00a0From the years I've been working in this field, what I've seen is doors opening and an ability from policy makers to listen.\u00a0With unMonastery\u00a0called in by a city, Futurespotters\u00a0by UNDP,\u00a0new doors opening thanks to them and other consultancy work, and so on. It feels to me hard to think about large scale change, but seeing a progression makes me more hopeful than at time zero, if that means much.\u00a0If Edgeryders is anything of a counter culture movement, than it is also true that from the beginning the position was to open\u00a0channels for collaboration between very diverse people. And guess what:\u00a0over the years people in\u00a0policy making\u00a0have joined too, and were honest about their own limitations as institution representatives - for example, this is someone who at the time of engaging was\u00a0in the Amsterdam City Council and here asking about basic income and how it would work.\u00a0\nSo to\u00a0me, if OpenCare with\u00a0the workshops and future\u00a0activities manages to open a real channel, that is already a win. Then to move forward, I can see the need for\u00a0someone to pick their battles\u00a0and perseverate in that.. and who\u00a0knows how long that\u00a0takes. \u00a0\u00a0\n","comment_id":"24143","post_id":"6678","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 15:55","group_id":"0"}},{"node":{"title":"mont soleil...MOUNTAIN OF SUN!!!","content":"\nwell not all the time but we get the most sun in swiss..thats why we have the first solar park in europe here...\u00a0\n\u00a0\nright..about the project. essentially we are a synergy hub for people who see that we need to strengthen the parallel reality..the \" normal\" - we work together\u00a0to make these dreams come true... why do we protest? why do get angry at things? - ...and what good is that going to do when you know how the world is governed... that most of all we see is preplanned and we are just going along for the ride?\/\/ well... thats changing... people are waking up to the matrix... and yes... we are making a differnece..and yes we are turning back the tide... our quiet revolution is gaining momentum... and the establishment suddenly realise they wont have everything their own way anymore... we have a long - a very long way to go to raise the consiciousness....but we are doing it here...and with YOUR help... we can make this the EPI centre of that change...\n\n","comment_id":"24141","post_id":"6671","user_id":"8924","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 14:10","group_id":"0"}},{"node":{"title":"Comparison with other tecnologies","content":"\nLovely idea\u00a0Maria, if someone was about to give some guidace to one who was about to become blind. How would this project put itself among many other possible technologies:\u00a0Second sight artifical eye implant, a system telling what you see in front (cant remember the link) etc?\nIs there an objectiv comparitive review somewhere?\n","comment_id":"24140","post_id":"6506","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 11:41","group_id":"0"}},{"node":{"title":"Intriguing  story - is it realistic?","content":"\nThanks for sharing @Maria, This is not meant to be a negative or pedantic comment because I appreciate the good work.\nByt, I\u00a0feel that we have an ethical obligation\u00a0to have a critical look at things. We must avoid encouaging\u00a0engagement in risky business. Too often we create\u00a0false hopes for those already challenged. I fear that we often superficially oversimplifying things to promote ourselves without realizing\/measuring\/acknowledge the possible positive or negative\u00a0impact it may have.\nI've never been to Senegal so I have to use imagination to analyze the story. I put myself in the situation of a Senegalese who read the story and try to copy the concept, watching the video made by some 'rich' guys saying this cost only \u20ac70.\nI need a workshop: power Drill, bits, saw.... Ok it's initial investment may be covered if I intend producing lots as a business. I need to buy the materials: Pipe, glue etc. (Are hardware stores plenty and\u00a0well stocked \u00a0in the target country? what prices do they practice?).\nHowever,\u00a0I\u2019m sitting comfortably in europe. Have several hardware nearby. There you spend a lot for\u00a0small quantities. Just to get an estimate I used RS online to get an idea. Pipes:40\u20ac, 10 Elbows, etc, a whopping 7\u20ac each, locktite glue 25 \u20ac.. Bicycle wheels??? Shopping cart wheels???\u00a0(we are not stealing are we?)\nYour shopping cart will cost me more than 200\u20ac. \u00a0(See note)\nWhere do I want to go? I would like to see the description of the actual prototype session where someone in Senegal, actually goes through this maker process and constructs a solid wheelchair for another person, listing difficulties, actual costs (tools,time and transport included) Why? Because we have an ethical obligation not to lead people into false beliefs. Not to encourage them into a project that may cost them much more money and resources than they think. Not to encourage taking uncalculated risks and facing a (maybe fatal?) failure.\n\u00a0\nNote I don't know if I looked up the right things, but if they arent I would have wasted further money and failed building the weelchair\n","comment_id":"24139","post_id":"6632","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 11:25","group_id":"0"}},{"node":{"title":"Good luck with finding the budget!","content":"\nHello Laurent, thanks for sharing your story, really interesting to read about the inside of a collective that i hear a lot about in the last couple of years. I also read your article on Bruzz about the financing and i really wish you luck. I wanted to contact you if you would like to share this story at the workshop event we are holding on the 24th in Brussels? It would really be great to have you also participate in a moment where local organizations can interconnect and talk about care and how they organize. More info:\u00a0https:\/\/www.facebook.com\/events\/280924708934187\/\n\nKindly regards,\u00a0\nYannick\n\u00a0\n","comment_id":"24138","post_id":"6685","user_id":"8743","parent_comment_id":"0","creation_date":"Monday, August 29, 2016 - 09:24","group_id":"0"}},{"node":{"title":"Shit Show ","content":"\n@Nadia Thank you for shairing this with me! I had heard about it breifly before, but didn't really have a sense of what it was. Seeing the video and reading your description has definitly helped that! I think this is a cool project and would love to see some collaboration with my university and the students behind this. Also, it's a happy coincidence that my cohort's next semester is in Berlin, so half of our students will be there till mid December. I will reach out ASAP and see how we might bring this to Minerva!\nAlso, I am still a bit new to EDGERYDERS. Is there a way to contact all of the students together directly, like a group messaging feature?\n","comment_id":"24137","post_id":"6670","user_id":"8914","parent_comment_id":"24127","creation_date":"Sunday, August 28, 2016 - 23:40","group_id":"0"}},{"node":{"title":"Communities are tricky. Internet definitely complicates things.","content":"\nHello, @Alberto ! I think I may have not been clear in that while my school takes classes through the online platform we do live together during the school year. Though you do raise an interesting point of how to facilitate a similar sense of community through online communities. Have been a memeber of a few I think a big mistake a lot of groups try and do is replicate in person activites, like a bunch of people just hanging out through webcam. And to me that will always fall short of the live in person dynamic. I think one answer is to organizng physical met ups based off of promitiy of people, which works to an extent.\n\nBut for me the best online communities I've been in have used the fact the memebers are so spread out to there advantage. I think a good example of this is Under 30 Changemakers, which hosts discussions\u00a0and training through google hangouts. Instead of having broad web-chats they pre-choose discussion topics based off of community interests or world events and invite their memebers to bring in their perspective. That way people come in already invested in the topic and feel more connected to the community by interacting with members who share their passions. \u00a0Also, another activity that seems to go well it when people sign up to be matched with another random member for a skype session. The excitment of not knowing who you'll met but that you have this one community incommon is pretty enaging.\u00a0\nHope this helps!\n","comment_id":"24136","post_id":"6670","user_id":"8914","parent_comment_id":"24122","creation_date":"Sunday, August 28, 2016 - 23:26","group_id":"0"}},{"node":{"title":"True, I agree. :) Thanks, ","content":"\nTrue, I agree. :) Thanks, @Alberto\n","comment_id":"24135","post_id":"6674","user_id":"8927","parent_comment_id":"24133","creation_date":"Sunday, August 28, 2016 - 17:28","group_id":"0"}},{"node":{"title":"More about Gymsana?","content":"\nHello (again)! You've been so generous with describing your path that I can't but introduce myself too - here is my story as a fellow social change worker.\nI find interesting what you write about the need for different\u00a0social change outfits that make the actual mission\u00a0interesting to other sectors, and I recognize in this newer projects which have a sexier appeal to some audiences - to me, the best\u00a0example is the invention of corporate social responsibility as a shortcut of the private sector spilling into the third sector. With all its limitations, I can see why it is appealing for companies.\nI'm curious: what do you think was a reason why\u00a0Gymsana achieved validation and impact? You mentioned that it brought new standards of care for the elderly, do\u00a0you mean in\u00a0measurements ? (I browsed the website in French, but couldn't find anything about its\u00a0impact).\n","comment_id":"24134","post_id":"6684","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, August 28, 2016 - 17:26","group_id":"0"}},{"node":{"title":"This looks like the main result","content":"\nEven better, @Ivan Ezeigbo ! Well, if human diabetics draw benefits from drinking moringa tea, this is more powerful evidence than rats benefiting from being injected moringa juice. When you present your case, I would recommend saying this up front.\u00a0\n","comment_id":"24133","post_id":"6674","user_id":"34","parent_comment_id":"24130","creation_date":"Sunday, August 28, 2016 - 17:23","group_id":"0"}},{"node":{"title":"Invite sent.","content":"\nI messaged them on their website\u00a0contact form, let's see.\n","comment_id":"24132","post_id":"6539","user_id":"32","parent_comment_id":"24087","creation_date":"Sunday, August 28, 2016 - 16:41","group_id":"0"}},{"node":{"title":"Thanks!","content":"\nThank you @Alberto, for commenting and reading.\u00a0No, the rats did not take the tea. We injected the bioactive agents (the contents) of the leaves into the rats. Then we observed them with a glucometer. And yes, I think sipping the moringa tea would provide blood regulatory function. Because during digestion, this enters from the gut into the bloodstream, and that's where it serves this function. I have already conducted experiments on this with diabetic humans too (who take the tea), and indeed the moringa tea has very powerful blood regulatory effect.\n","comment_id":"24130","post_id":"6674","user_id":"8927","parent_comment_id":"24124","creation_date":"Sunday, August 28, 2016 - 09:32","group_id":"0"}},{"node":{"title":"Link","content":"\nThanks @Alberto.\nI have just added the link to http:\/\/puntozero.github.io\/ and the number of students involved (about 150 this year).\nWhile seems easier to involve patients, patrons and makers in open discussion about innovation and shared practices, the world of education and professionals themselves should undergo a rethinking towards wide collaboration and practicing in communities in the fast changing, seamless and heterogenous world we all live in.\n","comment_id":"24129","post_id":"6677","user_id":"8779","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 21:09","group_id":"0"}},{"node":{"title":"Link?","content":"\nVery interesting, @Federico Monaco . I guess communities of care start in (medical) school! If people \u2013 especially care professionals \u2013\u00a0are trained to think in that way, they can have more of a positive influence in getting a community going. When I say \"a community\", I think of responsibility: a community of care happens when people take at least some responsibility for caring for each other.\nYou forgot to include a link to Puntozero in your post.It would be nice to know who else is involved, how many students you have taught etc.\u00a0\n","comment_id":"24128","post_id":"6677","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 18:03","group_id":"0"}},{"node":{"title":"Perhaps this approach designed by our students could help?","content":"\nThis project was developed during Hacking Utopia - a three month course on product design for social and demographic change. The course format was developed by Prof. Susanne Stauch (@Susa) \u00a0and Nadia EL-Imam (me) in a partnership between UDK (Berlin University of the Arts) and Edgeryders:\nThe Shit Show is an interactive pop-up exhibition designed to make the sensitive, 'taboo' issue of mental health more present and approachable to the public. Psychological struggles are still stigmatized, making it hard to reach out for help. We want to offer an alternative way for people to engage with the topic and develop mechanisms for support and resilience.\nMental illnesses are one of the most widespread disabilities worldwide. In Germany alone, 4 million people are affected by issues like anxiety or depression. Yet, it\u2019s a secret we all share. Seeking help for psychological struggles is still strongly associated with shame. Even being sad or stressed or unproductive is seen as personal weakness. As a result, many people find it difficult to talk about emotional problems \u2013 be it a missed project deadline, a loss in the family or an eating disorder.\nIt\u2019s easier to open up to someone who has similar problems and can empathize. But how to identify the people that can offer support when everyone tries to hide their struggles? Most people that are in emotional distress don\u2019t decide to seek help until they have been in increasing pain for a prolonged amount of time. Only about 35% of people suffering from depression are receiving treatment. On average, 11 months have passed before even these few seek out professional help. The Shit Show is one approach towards addressing this pressing situation.\nThe students : Omri Kaufmann, Pauline Schlautmann, Luisa Weyrich and Nele Groeger are in here so you can contact them directly) (@Omri_Kaufmann , @Pauline , @LuisaWey and @NeleG )...\u00a0I know they're very passionate about the topic, and would love to bring this initiative to other Schools and Universities. They're even running a crowdfunding campaign to finance the costs involved. Perhaps there is room for collaboration :)\n\n\n\n\n\u00a0\n","comment_id":"24127","post_id":"6670","user_id":"45","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 17:29","group_id":"0"}},{"node":{"title":"Thanks! ","content":"\n@Noemi Thank you for sharing student mental health nurse twitter chat. It's a bit confusing to naviagate, but I will spend some time exploring it!\n\u00a0\n","comment_id":"24126","post_id":"6670","user_id":"8914","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 14:06","group_id":"0"}},{"node":{"title":"Great work! ","content":"\nWow, @Ivan95 . At 20 years of age, you are already a researcher and an entrepreneur. Well done.\u00a0\nQuestion: how did you treat the rats? I suppose you did not give them tea...\u00a0do you think sipping moringa tea will provide glucose regulation to the organism of the tea-drinker?\u00a0\n","comment_id":"24124","post_id":"6674","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 12:15","group_id":"0"}},{"node":{"title":"Which project?","content":"\nGreat to meet you, @rainbowheart . You speak of Mont Soleil as if we understood it... but we know nothing about it. Can you tell us more about it?\u00a0\n","comment_id":"24123","post_id":"6671","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 12:08","group_id":"0"}},{"node":{"title":"Online complicates matters","content":"\nWelcome, @Shajara ! This school of yours\u00a0sounds really advanced. One thing I don't understand is how you make these support initiatives square with its online dimension. Supper clubs and similar cannot be used to string together onoine communities. We struggle with this ourselves at Edgeryders. What are your thoughts?\n","comment_id":"24122","post_id":"6670","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 12:05","group_id":"0"}},{"node":{"title":"\"Community\"?","content":"\nWelcome, @Oana Geambasu !\u00a0\nGreat initiative. I am curious about your community: is the community actually delivering part of the therapy? Or is it the therapists delivering the therapy, withthe community playing the role of informing the families seeking therapy?\u00a0\n","comment_id":"24121","post_id":"6669","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 11:59","group_id":"0"}},{"node":{"title":"This!","content":"\nWelcome @Alexander Shumsky . This is\u00a0exactly\u00a0the core idea of opencare: communities endowed with both care problems\u00a0and\u00a0care solutions, equipped with collective smarts and open knowledge.\u00a0\nNote that this is not the same thing as \"patients working with researchers\". Pharma has this already. But it maintains a hard distinctions between patients and researchers, problem-bearers and solution-makers, consumers and producers. This is about patients\u00a0being\u00a0researchers, and viceversa.\u00a0\n","comment_id":"24120","post_id":"6667","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 11:34","group_id":"0"}},{"node":{"title":"A resilience argument","content":"\nThis is great work, @dfko . Congratulations, really. I remember hearing from @LucasG that the Canary Islands, where he lives, are home to 7,000 diabetes patients. The islands have no capacity for insulin production: these patients fly insulin in from Germany. This is relevant to Lucas because he is the man standing watch in case of pandemics: if pandemic flu hits, flights are cancelled and, once local stocks of insulin are exhausted, diabetes patients start to die.\u00a0\nLucas even considered talking to local crystal meth manufacturers: shady types, but the only people on the islands with any organic chemistry manufacturing capacity (he decided against it, turns out their skill is insufficient to make insulin after all). A system of insulin production that is lighter on logistics and more reliant on local production is more robust to external shocks \u2013 an additional advantage to your idea.\n","comment_id":"24119","post_id":"6664","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 11:24","group_id":"0"}},{"node":{"title":"Just to say","content":"\n... that I resonate with the community approach. Care is about relationships, not artifacts. Well done @Rozina .\n","comment_id":"24118","post_id":"6642","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 11:12","group_id":"0"}},{"node":{"title":"Some real issues here","content":"\n@Natalia Skoczylas and @Eireann Leverett I guess we need your opinion here. In this comment above Rune raises some real points on\u00a0IEC 60601 and issues of trust with technology.\u00a0\n","comment_id":"24117","post_id":"6620","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 11:10","group_id":"0"}},{"node":{"title":"MIT","content":"\nAnna Young is MIT D-Lab. I tried to find a page for the organisation pushing Solarclave, but it's kind of elusive. Officially it's Mujeres Solares de Totogalpa, in Nicaragua (now a cooperative) but their website\u00a0does not mention Solarclave at all. Should we try to find these people?\u00a0\n","comment_id":"24116","post_id":"6661","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 27, 2016 - 11:06","group_id":"0"}},{"node":{"title":"Connection between creativity and mental illness","content":"\nHi @Noemi @Pauline, is this challenge ongoing?\n\u00a0\n","comment_id":"24112","post_id":"6388","user_id":"8708","parent_comment_id":"0","creation_date":"Friday, August 26, 2016 - 17:28","group_id":"0"}},{"node":{"title":"I hope OPENandChange application can help","content":"\nI would love to see this collective bid help you figure out manufacturing at scale. For the MacArthur foundation call \u00a0on which I'm hoping we'll work together,\u00a0if we can spin the story to evidence the less\u00a0experimental part of your work and a\u00a0solid plan for reshaping markets\u00a0it would be great. They're looking for durable solutions more than innovation, or so the briefing says. Either way, you win already just by being so daring.\u00a0\nAlso, not sure if this is valid in your case, but it's possible that fame comes earlier than success - so getting attention by being in the right places and company can help your mission.Hang in there\u00a0:-)\n","comment_id":"24108","post_id":"6664","user_id":"32","parent_comment_id":"24083","creation_date":"Friday, August 26, 2016 - 13:25","group_id":"0"}},{"node":{"title":"Network of contributors","content":"\nThank you for sharing this\u00a0interesting background info! I've been following the project from a distance for a while.\nI was wondering:\u00a0which steps have you taken to involve people abroad or to build a network of contributors for working on this project in different locations? I'm sure there are lots of interested parties globally.\u00a0The biohackerspace in Ghent, Belgium where I'm involved surely would be.\n","comment_id":"24106","post_id":"6664","user_id":"8889","parent_comment_id":"0","creation_date":"Thursday, August 25, 2016 - 23:19","group_id":"0"}},{"node":{"title":"Got to look at it  and a bug","content":"\nThanks @maymay, I just spent a 2 minutes in vain trying to figure out what it does. Need more time.\nBug:\n@Everyone:\u00a0There is a bug when people make @Someone in the comment. Then the link in the 'Edgeryders.you have been mentioned' mail contains the link to the @Someone and not to the comment.\u00a0\n","comment_id":"24104","post_id":"6649","user_id":"8837","parent_comment_id":"0","creation_date":"Thursday, August 25, 2016 - 19:21","group_id":"0"}},{"node":{"title":"Also, @Rune , if you don't","content":"\nAlso, @Rune , if you don't know about it, you might find GNU Health an interesting and useful tool for supporting clinic workers.\n","comment_id":"24103","post_id":"6649","user_id":"8892","parent_comment_id":"24051","creation_date":"Thursday, August 25, 2016 - 19:00","group_id":"0"}},{"node":{"title":"A reading you might enjoy","content":"\nYour mention of overcoming anachronism and the post-Occupy times we're living makes me think you should definitely meet the guys at BUOY, although they're based in the US - they are building technical\u00a0platforms for coordinating group actions as their own response to the need for new culture.\u00a0\n","comment_id":"24101","post_id":"6671","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, August 25, 2016 - 15:11","group_id":"0"}},{"node":{"title":"Twitter chat formats","content":"\nWelcome, @Shajara!\nI was doing a little research the other day into this group called WeCommunities \u00a0for health professionals - they organise dedicated regular twitter\u00a0chats\u00a0and \u00a0a recent one\u00a0was \"What is it like being a student mental health nurse?\" They have it all archived should you want to have a look. I myself need to learn more about how it works, but it seems like there is a need for coping and sharing lessons as a professional too.\n\u00a0\n","comment_id":"24098","post_id":"6670","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, August 25, 2016 - 14:37","group_id":"0"}},{"node":{"title":"Yet another good idea to try","content":"\nLooks promising\u00a0@Moriel\u00a0and the @Noemi\u00a0triggers me. Have you implemented this on the playgrond yet? I have seen many 'seating' swings and ask myself how yours compete with existing solutions.It could be of interrest for a participant in\u00a0WeHandU, what do you think?\n","comment_id":"24097","post_id":"6482","user_id":"8837","parent_comment_id":"23833","creation_date":"Thursday, August 25, 2016 - 13:17","group_id":"0"}},{"node":{"title":"Stage","content":"\n@Moushira,I'm sorry to hear that it's a 'stellar' solution. We try\u00a0to be very practical, applied and earth bound. ;-)\nstage = \u00a0version 2.x forked from experience 1999. Hardware\u00a011 & 2.0. (Sorry,\u00a0It's an iterative process.) We are prototyping the concept within the next weeks.\nLet's have a chat\/brainstorm. I'm very interested.\n\u00a0\n","comment_id":"24096","post_id":"6438","user_id":"8837","parent_comment_id":"24088","creation_date":"Thursday, August 25, 2016 - 13:04","group_id":"0"}},{"node":{"title":"@Rune, thanks for sharing, I","content":"\n@Rune, thanks for sharing, I wasn't aware of WeHandYou, and it is already a \"stellar\" solution, in my opinion,\u00a0 thanks for sharing :).\u00a0 I couln't tell from the link, but do you know at which stage is the project now?\n","comment_id":"24088","post_id":"6438","user_id":"8373","parent_comment_id":"0","creation_date":"Thursday, August 25, 2016 - 10:53","group_id":"0"}},{"node":{"title":"Sounds interesting @Noemi,\u00a0","content":"\nSounds interesting @Noemi,\u00a0 we don't know anyone in particular from Night Scout, but, indeed, it would be good to let them know about OpenCare.\u00a0 Thanks!\n","comment_id":"24087","post_id":"6539","user_id":"8373","parent_comment_id":"23933","creation_date":"Thursday, August 25, 2016 - 10:49","group_id":"0"}},{"node":{"title":"That is  a brave innitiative","content":"\nCongrats, @Oana Geambasu \u00a0!\nI would like to know more about it. How do the families learn about your NGO? Does the medical stuff tell them or else?\u00a0\nHow many children benefit from cochlear implants in Romania, is it something the state offers or do the parents search for private solutions?\u00a0\n\u00a0\n","comment_id":"24086","post_id":"6669","user_id":"8842","parent_comment_id":"0","creation_date":"Thursday, August 25, 2016 - 09:58","group_id":"0"}},{"node":{"title":"Crowdfunding and R&D \/ commercialization work","content":"\nWe did have a fairly successful crowdfunding campaign, but it was not nearly enough to compensate anyone in the project for their time. The funds raised so far (about $15k) are just providing a small financial floor under us to cover the reagents we need to reach our first milestone and we will need to seek more funding after that to continue the work.\nIt will be a matter of a few years before we might expect to have demonstrated enough success in the work to get the attention of generics manufacturers, and in addition to the science\/engineering\u00a0work on the protocol we will need to get financials together concerning the economics of manufacture at scale, and perhaps results of tests relevant to regulatory compliance. Orders of magnitude more money and resources will be involved. We are only taking the first steps toward bootstrapping to that level right now. But in doing so we have gotten the attention of larger organizations with more resources who might be able to help us in taking these next steps.\n","comment_id":"24083","post_id":"6664","user_id":"8901","parent_comment_id":"24036","creation_date":"Wednesday, August 24, 2016 - 23:23","group_id":"0"}},{"node":{"title":"\"because Segway is too mainstream\"","content":"\nLOL, talking about inclusiveness\u00a0this fits right in and well,\u00a0a bit over the board - I'm thinking of\u00a0the need for hyper\u00a0control over battery life and avoid being trapped somewhere..\n","comment_id":"24080","post_id":"6438","user_id":"32","parent_comment_id":"24068","creation_date":"Wednesday, August 24, 2016 - 20:03","group_id":"0"}},{"node":{"title":"Understood!","content":"\nHaving seen Constantino resurfacing I get the connection now and have a much better sense of what you are up to, clearly on the side of OpenCare prototyping and testing the idea in practice.\n","comment_id":"24079","post_id":"6667","user_id":"32","parent_comment_id":"24061","creation_date":"Wednesday, August 24, 2016 - 19:47","group_id":"0"}},{"node":{"title":"Another way is learning the language of their destination","content":"\nI see, well can't say I'm surprised it's difficult to measure, especially if people are transiting.\nYou may know of this already, it seems different services for refugees would start offering spontaneous language classes like this Baobab centre in Rome, which I've come across in another article. Basically you'd have German volunteers teaching people transiting via Roma some basic language in order to be better prepared by the time they reach Germany: she was saying that \"teaching them German (or anything else, really) gives meaning to the time they spend here.\" I found it ingenious and\u00a0practical. The original reference is here.\n","comment_id":"24078","post_id":"6602","user_id":"32","parent_comment_id":"24077","creation_date":"Wednesday, August 24, 2016 - 19:10","group_id":"0"}},{"node":{"title":"self-organized!","content":"\n@Noemi!\nSorry for my late reply!\nThe question if it could be better to be self-organized it\u2019s a well-known question for us. It could be easier for some extents, but at the end we understood that it\u2019s really important to have a \u201cneutral\u201d coordinator, that it\u2019s not a service provider of Italian courses. \u00a0The coordinator is the Immigration Office of the City of Milan and so a service that tries to help migrants in general, in many ways (jobs, social benefits, reception centers..). So this view is interesting because permits to have an holistic view of the person. But the question remains open...\nThere is a kind of self-organized network of schools, \u201cScuole senza Permesso\u201d (\u201cSchools without documents\u201d), but it represents only a particular kind of schools.\nAnd yes, a lot of teachers testify that it\u2019s really useful for their job to be in contact with other schools, teachers and approaches, but it\u2019s not so easy to register the results of an improvement in the quality of teaching. This is because you need to have data about the situation before and after, in order to register the gap and there are a lot of other factors that can influence your way of teaching.\nFor all these reasons what I could say it\u2019s that there are refugees and asylum seekers happy to have had an Italian class also in August (because of Italianostranieri Community), but it\u2019s not so simple to measure the improvement\u00a0in the\u00a0quality of teaching and I think also that it\u2019s a long-term effect\u2026but for sure it could be great to work on it\u2026\n","comment_id":"24077","post_id":"6602","user_id":"8807","parent_comment_id":"0","creation_date":"Wednesday, August 24, 2016 - 16:53","group_id":"0"}},{"node":{"title":"coool ","content":"\nLucia @lpigini thanks for sharing :)\nThis is really really cool.\n","comment_id":"24074","post_id":"6645","user_id":"2604","parent_comment_id":"0","creation_date":"Wednesday, August 24, 2016 - 09:51","group_id":"5954"}},{"node":{"title":"coool ","content":"\nLucia @lpigini thanks for sharing :)\nThis is really really cool.\n","comment_id":"24074","post_id":"6645","user_id":"2604","parent_comment_id":"0","creation_date":"Wednesday, August 24, 2016 - 09:51","group_id":"5954"}},{"node":{"title":"WeMake will back it","content":"\nSo, the conversation with @Rune is going on since some time now.\u00a0\nAs WeMake I'm pretty conviced to back this project in the opencare realm.\u00a0\nWe're in the process of understanding the possible implementations but we're totally in.\n@marcomanca I think that many of the issues discussed above should be digged more during the workshop @cern :)\u00a0\n\u00a0\n","comment_id":"24072","post_id":"6603","user_id":"2604","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 18:31","group_id":"0"}},{"node":{"title":"@ChristineOehme\u00a0being the","content":"\n@ChristineOehme\u00a0being the only therapist I could find in OpenCare id like to get your opinion about what would be the best way to access and invite people with certain physical disabilities to partecipate in active selfrehabilitation like WeHandU?\nAnd also how we could get a local physio onboard?\n","comment_id":"24069","post_id":"6336","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 15:39","group_id":"0"}},{"node":{"title":"Existing solutions","content":"\nThough wheelchairs not my speciality I have seen several solutions presented by scholars. For example:;\u00a0Stairclimbing see:http:\/\/portale.siva.it\/en-GB\/databases\/products\/isoSearch?classification=122315 (so the NHS\u00a0offers zero)\nIn theory its simple:\u00a0https:\/\/www.youtube.com\/watch?v=ik286spRM1w\nwhy dont you just buy one of these?\u00a0https:\/\/www.youtube.com\/watch?v=AaZLoUYXDSs or\u00a0https:\/\/www.youtube.com\/watch?v=O7otewMk9pc\n( I actually saw one on the street the other day) Who dares hack a segway? And who dares using it?\n\u00a0\n\u00a0\n","comment_id":"24068","post_id":"6438","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 15:21","group_id":"0"}},{"node":{"title":"Wheecharingling to the stars or the moon","content":"\n@Moushira, with 'Would it be possible to think of a mechanical system that can be attached to all \u201cstandard\u201d wheelchairs, \u00a0that can revolutionize their functionality of the wheelchair, making it possible to access every place and surface easily with it, while keeping the expenses to do so, within limits? '\nyou ask for the stars, but if we realize the WeHandU, i'ts about what you ask. You join in with an idea for a solution\/someone has a proposal, together we realize. You test the solution and you are happy , U reiterate improvements or abandon. Most important: We and U\u00a0document opensource the result of the work for others to build on.\nIt's not the stars but wouldn't it be getting you to the moon be good enough\u00a0?\n","comment_id":"24067","post_id":"6438","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 15:03","group_id":"0"}},{"node":{"title":"ICF","content":"\nAre you aware of the huge international work on ICF?\nhttps:\/\/en.wikipedia.org\/wiki\/International_Classification_of_Functioning,_Disability_and_Health\n","comment_id":"24066","post_id":"6443","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 14:31","group_id":"0"}},{"node":{"title":"Philosophical background","content":"\nhttps:\/\/edgeryders.eu\/en\/doctor-could-you-hack-me-a-neuroprosthesis-please\n","comment_id":"24065","post_id":"6667","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 13:37","group_id":"0"}},{"node":{"title":"Implementation","content":"\nAnd here is the latest attempt to bridge the gap\nhttps:\/\/edgeryders.eu\/en\/wehandu-maker-space-for-developing-solutions-for-cases-of-motor\n\u00a0\n","comment_id":"24064","post_id":"6603","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 13:35","group_id":"0"}},{"node":{"title":"Facts? Usercomments?","content":"\nGreat idea @Moushira\u00a0my Roomba has cost me 400\u20ac, worked 1 year, makes\u00a0noise and now\u00a0battery replacement (+100\u20ac). I'm not so sure about cost\/effectivenes you claim.\nI'd like to hear what a blind owner of a dog says? Usually people are quite fond of their dogs (and they climb stairs, go outside) Roomba dosn,t pass even small obstacles.\u00a0\nOr is this the typically technocrats way to care (my recurrent question to myself)? What does th blinds community say?\u00a0\n","comment_id":"24063","post_id":"6538","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 13:33","group_id":"0"}},{"node":{"title":"ICF","content":"\nExellent posts @Moriel,\u00a0@Alberto, @Noemi. I just want to mind you of the ongoing work of international classification of function, a framework where all these things are being redefined. My personal opinion is that it's\u00a0both good and bad. The bad part is that it devides people so we speak different languages. The good part is that it tries to teach us all to speak a common language. Within OpenCare it woudl be good to have some consensus about that.\u00a0\n@Moriel\u00a0what do you think about\u00a0https:\/\/edgeryders.eu\/en\/wehandu-maker-space-for-developing-solutions-for-cases-of-motor ? Would you be interested?\n","comment_id":"24062","post_id":"6376","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 13:31","group_id":"0"}},{"node":{"title":"How and where","content":"\nThanks @Noemi for asking \"a\u00a0series of activities to happen in one or more existing spaces? And where?\"\nWhat:\nWe have the technical knowledge \u00a0(of FES-Functional Electrical Stimulation) to\u00a0\n1 Create a\u00a0wearable device that improves the hand function\n2 Hack (or just buy)\u00a0a device for drop foot (@tamarafuma\u00a0about that)\nthen we know about a number of other solutions for other physical functions. When you work with people you find solutions. \u00a0\nWhere:\u00a0We need to start locally of logistic issues. Telematics are good but physical contact is better. As said, WeMake is close so if they agree, this is where we start. We need a hub to share ideas, thats where I hope OpenCare & Edgeryders come in.\u00a0\nWho:\u00a0We will be dedicating our spare time to this. For some it overlaps our profession. We need to cover many diciplines (also just as contact persons). We will work to include. Participants will become experts (mentors and facilitators)\nFuture:\u00a0It MUST spread as makerspaces have spread. Hopefully with shared MISSION and VALUES, concepts of WHAT may differ as local resources differ.\u00a0\nWhy: Because it will fill a need that the healthsector is not meeting. Personalized, responsible selfcare and building a DIRECT bridge between healthcare professionals\/researchers and users.\u00a0\n\u00a0\n","comment_id":"24061","post_id":"6667","user_id":"8837","parent_comment_id":"24058","creation_date":"Tuesday, August 23, 2016 - 13:13","group_id":"0"}},{"node":{"title":"Background","content":"\n@Noemi, you have a good one in \"what it would be like for patients to work side by side with researchers\". That was how it used to be, and that was the most productive time in scientific history. Now, if you, say, make a survey of what colour of wheelchar is preferred, you need permissions from ethic comittee, legal paperwork etc, = >2k\u20ac and\u00a0>2-3 months delay\nThis initiative is not intended as research, not intended as competing with hospital regulations. It's aim is to join experts (=people dedicating time to making mistakes) with newbees (people spending time adapting\/improving to new\/chronic physical conditions.\n","comment_id":"24060","post_id":"6667","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 12:45","group_id":"0"}},{"node":{"title":"Straighter","content":"\nYes @Noemi, I have the great pleasure that\u00a0@Alexander Shumsky\u00a0is working with me at the hospital. We have proposed @Costantino to join with WeMake on this one. Anyone are strongly encouraged to contact us, we really need some clinical people or just some epathic persons. Often what people really need is just to talk.\n","comment_id":"24059","post_id":"6667","user_id":"8837","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 12:32","group_id":"0"}},{"node":{"title":"Let me get this straight","content":"\n@Alexander Shumsky\u00a0welcome to Edgeryders, and thanks to Rune for inviting you!\nI read this and also the full project description, and I see it ties nicely to Rune's question from before:\u00a0what it would be like for patients to work side by side with researchers and makers. But to be sure: are you working on a makerspace or on a series of activities to happen in one or more existing spaces? And where?\n","comment_id":"24058","post_id":"6667","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, August 23, 2016 - 09:39","group_id":"0"}},{"node":{"title":"acupuncture evidence","content":"\nHi @Rune,\nTrue, acupuncture is largely regarded as 'alternative' - at least in the West; it is integrated into mainstream healthcare in China and other East Asian countries, and increasingly in places like Israel and Australia. I would put it a bit differently - it has not been 'becoming' evidence-based in the sense of people changing how they practice. It is more a case of practitioners, who have ample experience of the effectiveness of the treatments in their own practices, looking to find ways to produce acceptable evidence to back this up so it will be more widely accepted by the mainstream.\nAs with all physical interventions, this is not easy! You can't really run a double-blind control study on a physical therapy where the patient can feel whether it's being done or not, and a lot of the resistance to accepting acupuncture involves either rejecting all the 'lesser' forms of evidence for its effectiveness, or designing 'sham' studies that don't really take into account how acupuncture works.\nAll that said, there is still a lot of evidence for its effectiveness for a variety of conditions. The Acupuncture Now Foundation have an accessible summary here: https:\/\/acupuncturenowfoundation.org\/wp-content\/uploads\/2016\/05\/ANFwhitepaper2016.pdf\nOr you can look at their research page - https:\/\/acupuncturenowfoundation.org\/doctors\/studies\/ - or at the factsheets on the BAcC website: http:\/\/www.acupuncture.org.uk\/category\/a-to-z-of-conditions\/a-to-z-of-conditions.html\nI have Chinese colleagues who like to point out that this is just the tip of the iceberg - there are literally thousands of positive studies from China [and Japan, and Taiwan, and South Korea, if you're worried about the quality of communist science] that have never been translated into English...\nI don't have any evidence of the effectiveness of my own treatments specifically, though! I can't afford to hire a medical research team, so I'm reliant on the already-existing body of evidence and theory. :)\n","comment_id":"24056","post_id":"6304","user_id":"1915","parent_comment_id":"24030","creation_date":"Monday, August 22, 2016 - 21:44","group_id":"0"}},{"node":{"title":"Good stuff for Can we afford to neglect this issue?","content":"\nlink:\u00a0Can we afford to neglect this issue?\n","comment_id":"24055","post_id":"6304","user_id":"8837","parent_comment_id":"22828","creation_date":"Monday, August 22, 2016 - 20:16","group_id":"0"}},{"node":{"title":"Can we afford to neglect this issue?","content":"\nWe have some expert input here: https:\/\/edgeryders.eu\/en\/comment\/23839#comment-23839 so if @marcomanca could synthesize his experiences it would be great\nOther posts are also having some brilliant points that could be moved to the document.\n*So some regulatory framework is needed..\n","comment_id":"24021","post_id":"6665","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, August 22, 2016 - 20:12","group_id":"5954"}},{"node":{"title":"Can we afford to neglect this issue?","content":"\nWe have some expert input here: https:\/\/edgeryders.eu\/en\/comment\/23839#comment-23839 so if @marcomanca could synthesize his experiences it would be great\nOther posts are also having some brilliant points that could be moved to the document.\n*So some regulatory framework is needed..\n","comment_id":"24021","post_id":"6665","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, August 22, 2016 - 20:12","group_id":"5954"}},{"node":{"title":"To clarify, Buoy is not","content":"\nTo clarify, Buoy is not software for health clinics. It is software for coordinating group action in the field. It does things like displays people's positions on a map, sends group SMS\/txt messages, and offers a safer place to store recorded multimedia files than one's phone. It does not schedule appointments or automate clinic paperwork.\nI do think there could be places where some of what Buoy does could integrate well with those needs, particularly around dispersing knowledge of who can do what (has what skills), as discussed above. But these needs are tangential to the main issues Buoy was written to address.\nI do rather enjoy automating busywork, so I'm generally very happy to work on systems to \"shift admin tasks\" away from secretaries\/interns\/paper-pushers and onto computers. I do a lot of that for friends with bullshit jobs, actually. But that's not really what Buoy is for.\nYou might want to take a moment to read or skim through the Buoy User's Guide and take a look at some of the screenshots on the various pages there to get a better feel for what Buoy is intended to do.\nI'm not sure what the current \"state of the art\" for such scheduling software is, but I know pretty much any mature calendaring application tends to have the capabilities one needs to automate such a process. Outlook is probably the most well-known application for this, though it is of course proprietary and expensive.\n","comment_id":"24052","post_id":"6649","user_id":"8892","parent_comment_id":"24051","creation_date":"Monday, August 22, 2016 - 17:58","group_id":"0"}},{"node":{"title":"Triage, clinical database and networking","content":"\nForgive me for skimming and missing info already there but I have a question\nFor providing good opencare \u00a0(check the post\u00a0No Humane ghost in the machine)\u00a0focus should be on shifting administrative tasks from healthcare professionals (called facilitators\/mentors in our case), so maybe an App (Buoy?) could let the participant (the patient) check in, filling e.g. private data (address etc), restricted data (pathology, symptoms etc) and public data (satisfaction data, achievements etc.) as well as allocating time slots. What's the state of the art of software for that (@Eireann Leverett, @Alberto,@maymay,@Nadia\u00a0)\u00a0?\n","comment_id":"24051","post_id":"6649","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, August 22, 2016 - 17:48","group_id":"0"}},{"node":{"title":"More please","content":"\n@Nadia, your post is excellent and useful. I'll have to check out and understand how to implement\u00a0\"Common Problems you can solve yourself section\". As you already know we look for a way to get in contact with local (Milano) people to demonstrate feasibility and then later \"have a distributed presence as a compliment to the physical space itself\". Also because participants (living with disabilities) will have limited mobility and time. Any ideas of best 'crack'?\n","comment_id":"24049","post_id":"6649","user_id":"8837","parent_comment_id":"23939","creation_date":"Monday, August 22, 2016 - 17:37","group_id":"0"}},{"node":{"title":"277% funded!?","content":"\nCongrats for your work! The\u00a0money quote for me is:\nwhat we seek to prove is that if an order of magnitude more people get involved in research and development of science and technology, medicine can progress much faster, and might no longer be held back by institutional constraints and perverse incentives in the economics of the institutions.\nSo looking at your crowdfunding,\u00a0people not only\u00a0support, but actually\u00a0fund scientific\u00a0research in a crowdfunding campaign. And more so, research that is traditionally funded big time by big companies. I hope your time is also funded, as I've seen on the Counter Culture Labs site that it is volunteer led?\nHow long do you expect it to take from producing the proinsulin to getting at serious talks with manufacturers? Do you need more certifications or proofs of validity of sorts..or would they deal with this once they want to play ball?\n","comment_id":"24036","post_id":"6664","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 22, 2016 - 15:24","group_id":"0"}},{"node":{"title":"Startup","content":"\nGood story\u00a0@Woodbinehealth. I was searching for the part where starting up is described. How did you gather the people needed to startup? How do you recruit 'clients'?\n","comment_id":"24034","post_id":"6644","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, August 22, 2016 - 13:58","group_id":"0"}},{"node":{"title":"Evidence based medicine","content":"\n@steelweaver, this is really interesting. Acupuncture has loong been considered alternative medicine. Lately it has become evidence based. Do you have objective evaluation of the effectiveness of your treatments?\n","comment_id":"24030","post_id":"6304","user_id":"8837","parent_comment_id":"22648","creation_date":"Monday, August 22, 2016 - 13:24","group_id":"0"}},{"node":{"title":"No Humane ghost in the machine","content":"\n\nHello @steelweaver and @Alberto, the reflection about \u2018good doctors\u2019 and \u2018systems\u2019 triggered me to exemplification.\nWe often simplistic talks about good doctors. They have suffered the longest & toughest study and taken the Hippocratic oath. Only good people invest their intelligence and life so \u2018insanely\u2019, instead of pursuing personal wealth. Lately I\u2019ve been several times patient(ly) at (4) hospitals. \n95 % of the time you wait, pay tickets, try to get the right documents and wait for someone to (re)-type (using only the indexfinger) your anagraphical details (already electronically registered).\n5 % of the time a healthcare professional is actually seeing you. That time is again divided into\n20% waiting for the doctor to read your documentation and check that you paid the ticket etc.\n10% the actual examination\/intervention\n60% waiting for the DOCTOR to TYPE (with maybe 2 index fingers) your diagnosis\/report in the secret language: docterish \n10% where (s)he explain\/discuss with you.\n\u00a0\n0.5% (10%*5%) of the time you feel some human treatment!!!\n99.5% (100%-0.5%) you are just frustrated waiting for your final hour. \n\u00a0\n\n\nI wonder: Before computers the doctors had a secretary doing paperwork and the doctor used his expertice 100% to speak and treat the patient. Who remembers if this is true?\n \n\nclaim: doctors are equally frustrated because they are not typists or bureaucrats and wants to do what they are trained to do. Cure\n \n\nI accuse: Technocrats that have made healthcare more \u2018efficient\u2019 by buggy information technology. Legislators by substituting common sense and the hippocratic oath with rules, disclaimers, useless consent forms, lawsuits and barriers between professionals.\n US ALL for electing the people continuing this process of alienation of the patient and healthcare providers. \u00a0\u00a0\n \n\nI support: incubating open care initiatives\n \n\n","comment_id":"24029","post_id":"6304","user_id":"8837","parent_comment_id":"22631","creation_date":"Monday, August 22, 2016 - 13:22","group_id":"0"}},{"node":{"title":"Objective Costs","content":"\n@marcomanca, I do agree to some extent. However we need data. Do you have ideas of the costs & times that you can provide?\ncost and times should be including applicants cost and time\neg.\nCE marking a medical device (>100k\u20ac, 1 year)\nApproval \u00a0from the ministry of health for a medical device (15k\u20ac >2 years)\nPatent (50k\u20ac, 4 years)\nand there is more\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"24024","post_id":"6644","user_id":"8837","parent_comment_id":"23908","creation_date":"Monday, August 22, 2016 - 12:21","group_id":"0"}},{"node":{"title":"No shortcuts...!!!!????","content":"\nMaybe I'm wrong but I though the OpenCare proposal was to shortcut.\nShortcut waitlinglists\nShortcut ineffective\u00a0bureaucrazy\nShortcut documents that separates people and not connecting them\nI thought that we were supposed to be innovative and find a solution.\u00a0I got to find out if I'm in the wrong place here. ???\n","comment_id":"24022","post_id":"6644","user_id":"8837","parent_comment_id":"23906","creation_date":"Monday, August 22, 2016 - 12:13","group_id":"0"}},{"node":{"title":"Analysis layer for more credibility","content":"\nHaving a platform where a lot of people talk to each other and share experiences that sometimes contradict each other is a lot like a forum, and making it difficult to arrive at sound advice. What would make it into\u00a0real\u00a0collective intelligence is research and\u00a0analysis on nutrition. This\u00a0would weigh a lot more than advice from a\u00a0small groups of\u00a0food experts (as Rune observes\u00a0below). If you ever want to go that way and structure information online\u00a0into a research dataset, or wish to include this in your support raising efforts, consider Edgeryders for partnering up.\u00a0Alberto just wrote about how you can use network analysis and ethnography to analise texts and reach new knowledge that as a platform manager or\u00a0user you can't readily see, especially if you have contributions in the orders of thousands.\n","comment_id":"24019","post_id":"6606","user_id":"32","parent_comment_id":"24002","creation_date":"Monday, August 22, 2016 - 11:43","group_id":"0"}},{"node":{"title":"RE: Food for though - evidence based","content":"\n\nDear Rune,\u00a0\n\n\n\u00a0\n\n\nThank you for your comment. You are right\u00a0by saying that there are many ideas on healthy food and it's very difficult to find evidence for recommended daily intake of various vitamines. Your suggestion to an OpenCare challenge to gather all data on diets etc is indeed also interesting. At this moment for us this scope would be too wide. We want to focus on the group of cancer patients, while we know that besides the battle of their illness they also struggle to gain the right information. As we mentioned in our reply to Noemi's response, we realise the challenge that it's extremely important to ensure a reliable and relevant source of information for this particular group.\n\n\n\u00a0\n\n\nDenise and Carry\n\n","comment_id":"24016","post_id":"6606","user_id":"8878","parent_comment_id":"24011","creation_date":"Sunday, August 21, 2016 - 21:09","group_id":"0"}},{"node":{"title":"Legal issues","content":"\nWhat @markomanca says about safety and legal issues is important and needs some opencare attention. I've started this section in the invitation letter (it's not the right place but my best shot)\nhttps:\/\/docs.google.com\/document\/d\/1NKc2bM1FnpQ9zCEveieFr7bIGA9JkI8U_adsBpyma1A\/edit#heading=h.5obrk7n45hk3\nMaybe you could elaborate?\n\u00a0\n","comment_id":"24015","post_id":"6603","user_id":"8837","parent_comment_id":"0","creation_date":"Sunday, August 21, 2016 - 10:43","group_id":"0"}},{"node":{"title":"Response to Marco","content":"\nThanks @Noemi\u00a0for helping me out on responding\u00a0@markomanka.\nI'll try to go through the points\u00a0\n*\u00a0The transformation of cronic patients into makers is scientifically documented.\u00a0Something like 50% of patients have been creating an innovative solution for their health problem (SocialMediaWeek Milan 2016) but, either I don\u2019t understand what you mean by \u201astimulus to personal studies\u2019 or I strongly disagree. Production of the device should simply be a joyful and possibly a beneficial process. Avoiding personal defeat is ethical top priority.\n* Lets make it clear:\u00a0Quality is one thing, safety is another. Quality depends on the maker = participant. Safety is ensured by facilitator and mentors. Safety is a relative issue. Walking is risky \u2013 you may fall, therefore the neurologist may advice stop walking and use a wheelchair instead (a real casestory). As when we do clinical trials,\u00a0the participant must be guided through a \u201arisk assessment\u2019\n*\u00a0What you say about \u201abypassing\u2019 is actually the reason for hacking -\u00a0for opencare. Once you certify your product is \u201afrozen\u2019. Yes it\u2019s about bypassing >100k euro of CE marking expenses of a product which the user has to pay (https:\/\/edgeryders.eu\/en\/fes-for-foot-drop). You can't meet individual requirements because youll lose certification.\nHowever you have a point. Help us to find a way to ennsure that this is legal and how participants can be ensured in case of accidents. Please?\n* don't get your point about IP!???? We are in open context, free,\n* Responsibility and lawsuits. I can see you are a lawyer mind so please help out on this point? (Yes the idea is that the paricipant is fully responsible) How does the makerspaces go about this issue (@Costantino)?\n*\u00a0\u201aDisabled ones\u2019 are in this case people, the participants, looking\u00a0for a alleviation for lack of body function. In contrast to established health care (\u00a0were the patient is often a passive receiver patiently waiting for ....), the WeHandU (see above reply)\u00a0philosophy is NOT to decide what is best for a patient.\u00a0Rather a person living with an impairment is looking for a way to resolve that HE\/SHE considers a problem and hopefully resolve\/alleviate it in a creative environment\u00a0(I am often contacted by such people). The \u201anot-patient\u2019 but participant is... a participant. People not \u201awanting any aid\u2019 (and they are most) will not come in WeHandU.\u00a0(BTW. Disabled people is not existing in the modern vocabulary)\n*\u00a0Solutions not marketed is\u00a0a complex one. As graduate student I believed (was taught) that if it works it will be sold. That\u2019s not the way of business. Healthcare is business. Hard cold \u00a0business. A businees where 90%\u00a0 of the healthcare budget is spend on a solution that does not work. 90% (EU data) is spend on treating cronic diseases. Why are they cronic? Because the cure we are paying is not working... ok I\u2019m being cheeky here ;-) \u00a0\u00a0\nIf you study the dropped foot stimulators, invented 50 years ago, there is a ton of scientific work that demonstrates efficiency. Its provided by NHS in england, but not in the rest of europe. Why?\n*\u00a0Optimistic research. No, rather pragmatic -\u00a0If something does not work try something different. The different is to eliminate the last variable (confounder is the term) not yet controlled in 50years of research: FAILING INSTITUTIONS (article on edgeryders).\nWhat would you suggest as a cut off for a clinically relevant change?\nHow many people regaining some hand function? How many people walking yet some years before they end in a wheelchair? Would 10 suffice or do we need 100.mio (A cervical spinal cord injury cost society approx. 1mio$\/year)\u00a0\nWhat if\u00a0one of them was you? Would the existence of\u00a0WeHandU space be justified it it could preserve you some personal independence?\nWe have a choice here: continue spending millions on research refining (reinventing) technology (http:\/\/www.eurekalert.org\/pub_releases\/2016-01\/kf-kfa010716.php). Promising technology\u00a0that has not been marketed or clinically relevant for many years?\nH0: We can demonstrate that it is useless by testing the last hypothesis (which is that OpenCare approach can solve the \u201amarketing\u2019 problem).\nWhat do you propose?\n","comment_id":"24014","post_id":"6603","user_id":"8837","parent_comment_id":"23963","creation_date":"Sunday, August 21, 2016 - 06:23","group_id":"0"}},{"node":{"title":"Barter economy","content":"\nHead on \u00a0Alberto. How can this voucher be implemented in an efficient way. Are there some tools?\nOur proposal is that it should be an 'association' of participants (the patients), mentors (patients who done it) and facilitators (e.g. us-researchers, clinicians, etc....)\nParticipants come and see if WeHandU has a solution \u00a0that solves the problem. If yes, then they becomes associates with a moral obligation to become mentors (helping newbees). This part should be free. Eventually facilitators time has to be payed in some way (It's probably impossible to convince a professional therapist\u00a0to work for free)\nAre there some projects we can learn from?\n","comment_id":"24013","post_id":"6603","user_id":"8837","parent_comment_id":"23750","creation_date":"Sunday, August 21, 2016 - 04:24","group_id":"0"}},{"node":{"title":"Organizations","content":"\nGood point on the organizations @Noemi.\u00a0I have several times been trying to involve associations with little luck. They are very interessted, but the buck stops there.\u00a0Maybe they are too busy surviving, maybe they are too focused on initial goals, maybe,,,, It's clear that they don't have resources to follow and digest current research and therefore are unaware. Maybe they are drowning in information about mainstream research (e.g. stem cells). Maybe you know?\nRegarding\u00a0@Costantino, I have been airing the idea of making a 'neuroprostethics' hacking event. We need the right subject (patient), a clinician (OpenCare type) and clear some formal\u00a0issues. Some people that I had in mind had to drop out (for logistic and\u00a0health problems).\u00a0\nIn this hacking event we will help a person to create his\/her neuroprosthesis to recover hand or foot function.\u00a0This could be a kickoff workshop for a project the we call WeHandU - a hackerspace for people with spinal cord injury,stroke, multiple sclerosis. It fits perfectly to a 100k grant coming up in september, but we need to recruit paricipants before time runs out.\n","comment_id":"24012","post_id":"6603","user_id":"8837","parent_comment_id":"23741","creation_date":"Sunday, August 21, 2016 - 04:13","group_id":"0"}},{"node":{"title":"Food for though - evidence based ","content":"\nThere seems to be as many ideas of what is healthy foot as there are people. Where do these ideas come from, how do they develop and are they true? New drugs have to test qual or better efficiency by stringent methods. Food (and established treatments) do not !?\nOnce I searched medline (a database of scientific publications) \u00a0to find evidence for recomended daily intake (RDA how many mg of various vitamins etc we need) and found practically no research evidence. What we eat seems to be a result of a roundtable discussion of 'experts (taught by their professors, taught by their professors,,,,,)' .\nCan it really be that there is a enormous hole in healthcare research here?\nCould it be an OpenCare challenge to gather all data on diets, vitamins, lifestyle, lifequality ...and do some datamining to provide evidence of dietary recomendations?\n\u00a0\n","comment_id":"24011","post_id":"6606","user_id":"8837","parent_comment_id":"0","creation_date":"Sunday, August 21, 2016 - 03:48","group_id":"0"}},{"node":{"title":"The food paradox of hospitals","content":"\nAs long as I remember we have been told to eat healthy \/\u00a0As long as I remember hospital food has had the reputation of being awful\nAs long as I have been having my lunches in a hospital I\u2019ve studied posters saying: avoid saturated fat, reduce salt & sugar, prefer fibres, vegetables and fresh fruit etc.\nAs long as I have been having my lunches in a hospital the\u00a0meals have always been salty, something fried, overcooked vegetables and the cheapest quality fruit.\nSo starting at the hospital we are told one thing and given the opposite.\nThe logical conclusion is that change should start at the hospital. It same goes for\u00a0schools down to kindergardens.\n\u00a0\n\u00a0\n","comment_id":"24010","post_id":"6606","user_id":"8837","parent_comment_id":"23751","creation_date":"Sunday, August 21, 2016 - 03:32","group_id":"0"}},{"node":{"title":"Hmmm, it's an interesting and complex issue.","content":"\nI\u2019m not sure to what extent @Eireann Leverett \u2018s claims are sustainable (missing data). The regulations (IEC 60601) requires thorough documentation of the safety. Anyone knowing the certification process of medical devices will know how much paperwork it takes. This documentation effectively renders the device sort of \u2018opensource\u2019. It's accessible to 3\u2019rd parties (regulating bodies etc). Clinical trials of safety has been carried out. Scientific publications (open source) and probably patents (open source) will have been published. Risk assessment \u00a0documentation occupies entire folders. The costs to the company forces developers to do their very best (in theory). Yes, it's not open source to the regular customer, but what would it serve?. Afterall it takes an expert to understand. Regulations are born to protect the consumer, but they are resource expensive meaning that devices become excessively expensive in confrontation with production price. (Maybe now regulation monsters\u00a0have grown to feed lawyers and bureaucrats )\nHonestly, would you dare to hack a pacemaker or implant one that was running opensouce version 42-beta last\u00a0edited by someone with an obfuscated name\u00a0?\nMore interesting. Is there some documentation that opensource software is more reliable compared to\u00a0proprietary code with a relevant approvals? The opensource development or hacking is extreme programming where bugs gets fixed, new ones introduced and iterative improvements are taking place. Unless you believe in afterlife I don\u2019t think you would accept being beta tester of your pacemaker. \nNon life-critical medical devices (low hazard) could be open source, when failures will cause little or no damage. Especially those not being provided by the health service.\nP.S. I think CE marking the waterdispenser is a lot easier than getting approval for a medical device and there is no comparison. \n\u00a0\nBottom line @Alberto\nIt would be a great idea to develop a FAQ or rather a book of knowledge\/best practice for OpenSource Medical Devices.\nPlease let it be based upon evidence and legal references\n","comment_id":"24009","post_id":"6620","user_id":"8837","parent_comment_id":"0","creation_date":"Sunday, August 21, 2016 - 02:58","group_id":"0"}},{"node":{"title":"Technology push or demand pull","content":"\n\nRight on @Noemi :-). The article\u00a0made me reflect on two different associations:\n1.\u00a0Often we (technicians) get carried away by fascinating possibilities of\u00a0technology. Tech becomes interresting in it's own right rather than a means to solve a specific problem and @Moushira\u00a0has a good start on that. Sometimes it even creates new health problems. Here the\u00a0the mouse as a modern a health hazard comes into mind (it's provoking RSI,\u00a0Carpal tunnel syndrome etc. simply put:\u00a0wrist problems). It's easy to imagine similar issues.\n2. Some years ago i converted an old\u00a0pc mouse into a \"finger extensometer\". Drilling a hole, springloading the optical encoding wheel wrapped with some fishing line. The line goes out though the hole and\u00a0in the other end it was attached to a rubberring. That ring could be put on the e.g. index finger.\u00a0\nThe idea was to solve a clinical issue with a tool for the physiotherapist\u00a0training fingerextenstion of the impaired hand. (The typical hemiplegic hand after a stroke). Either the user could get a biofeedback when exercising finger extension, or it could be an evaluation tool to keeping track on the progress by providing objective measurement of amount of finger extension.\nIf this 'Maestro' can do this task and if it is really easy to clone it could be a good candidate for this work (http:\/\/ifess.org\/node\/824). Currently there are some protocols (using expensive movement analysis labs), but if this could be a ","comment_id":"24006","post_id":"6531","user_id":"8837","parent_comment_id":"0","creation_date":"Sunday, August 21, 2016 - 00:25","group_id":"0"}},{"node":{"title":"Re: Connecting the (food) dots","content":"\nHi Pavlos,\nThank you very much for taking the time to reply to our initiative!\nWe agree that a varied diet is of big importance to any of us (not only cancer-patients). Can you provide us with more information\/sources of research concerning the variety that you are referring to?\u00a0\nA core aspect that needs to be considered specifically when talking about \"anti-cancer\" nutrition is that carbs and sugar should be avoided or reduced to a minimum because they \"feed\" cancer cells. What we are trying to say with this goes hand in hand with our comment on Noemi's post: to come across as a reliable and relevant source of information, the platform needs to state very explicitly what it is focusing on concerning nutrition, still at one point you have to choose a certain framework of aspects which build the basis of, in our case, the platform. No one can ensure a 100% holistic approach, but you can already get a lot further by having this intention. In the end research today might state that milk (just as an example) is bad for us and tomorrow another research might state the opposite. Its all about the framework that you define and the beliefs you formulate as a basis.\u00a0\nCarry and Denise\n","comment_id":"24003","post_id":"6606","user_id":"8878","parent_comment_id":"23893","creation_date":"Saturday, August 20, 2016 - 20:05","group_id":"0"}},{"node":{"title":"Re: collective intelligence as cure for controversy","content":"\nHi Noemi,\nThanks for your reply, its much appreciated!\nYou are definitely right about the controversiality of advice. Main cause of this is, in our opinion, the so-called island approach, where there is little space for a holistic view on the patient! Specialists tend to stay within the boundries of their area of expertise (even if the advice turns out not to be the best for the particular patient).\nWe realize the challenge concerning our online platform as it is extremely important to ensure a reliable and relevant source of information, especially considering our target group!\u00a0\nYour already helping by sharing your thoughts, opinion and experience. We are happy to learn more from experts and get in touch with people that can provide relevant advice!\u00a0\nCarry and Denise\n","comment_id":"24002","post_id":"6606","user_id":"8878","parent_comment_id":"23797","creation_date":"Saturday, August 20, 2016 - 20:03","group_id":"0"}},{"node":{"title":"Absolutely","content":"\nHi Rezina,\nPlease feel free to reach out if you need me. I can also link you in conversation to my Dad who has a much more detailed and in-depth knowledge of the whole system here in the UK.\nAlex\n","comment_id":"23995","post_id":"6642","user_id":"6559","parent_comment_id":"23960","creation_date":"Saturday, August 20, 2016 - 14:54","group_id":"0"}},{"node":{"title":"I'll let you know my travel","content":"I'll let you know my travel plans over a private channel. :) Thanks, again.","comment_id":"23990","post_id":"6649","user_id":"8892","parent_comment_id":"23977","creation_date":"Saturday, August 20, 2016 - 07:06","group_id":"0"}},{"node":{"title":"ok thinking about the shelter bit","content":"\nI have a couple of ideas, will get back to you after fleshing them out a bit more.\n","comment_id":"23983","post_id":"6649","user_id":"45","parent_comment_id":"23976","creation_date":"Friday, August 19, 2016 - 15:43","group_id":"0"}},{"node":{"title":"Ethical coding","content":"\nThis is good sense ethical coding. Well played, @maymay .\n","comment_id":"23982","post_id":"6649","user_id":"34","parent_comment_id":"23952","creation_date":"Friday, August 19, 2016 - 15:40","group_id":"0"}},{"node":{"title":"\"Map of emergence\"","content":"\nI do remember. The person in question is @MoE aka Stefano.\u00a0\n","comment_id":"23981","post_id":"6649","user_id":"34","parent_comment_id":"23971","creation_date":"Friday, August 19, 2016 - 15:38","group_id":"0"}},{"node":{"title":"Oh, @Nadia I should also","content":"\nOh, @Nadia I should also mention that the developer's chat room is also helpful because I often ask for specific kinds of testing help (that often does not include writing code) in that channel. Most recently was this ask for people to send test txt messages to a certain recipient so I could see the output from different telco providers' gateways. So even if you don't fancy yourself a \"developer\" the developer's chat is still a good place to be if you have any free cycles an wanna use them to help Buoy development along. *shrug*\n","comment_id":"23978","post_id":"6649","user_id":"8892","parent_comment_id":"23970","creation_date":"Friday, August 19, 2016 - 12:52","group_id":"0"}},{"node":{"title":"Signed up  and yes re NYC","content":"\nLet me know if\/when you will be heading there and we can try to work around that. I think I'll be in the US around last two weeks of september. Might be later though.\n","comment_id":"23977","post_id":"6649","user_id":"45","parent_comment_id":"23975","creation_date":"Friday, August 19, 2016 - 12:42","group_id":"0"}},{"node":{"title":"It would be wonderful to have","content":"\nIt would be wonderful to have someone else's experience to lean on, but if not, I am confident that I can build a version of Buoy for Drupal within a few months, much as I did for WordPress. All it will take is having reliable shelter and food for the duration. That's the much harder part. Writing code is easy for me, by comparison. Unfortunately, my current situation does not include reliable housing.\nNevertheless, in whatever moments I do have the wherewithal to do so, I think it'd be helpful for me to refamiliarize myself with Drupal and update my understand of its internals using tasks that are smaller than porting Buoy from one platform to another. To that end, I've been looking at the tasks in the Edgeryders Dev and Testing and will hopefully start contributing some smaller pieces of work to Edgeryder's own infrastructure. I see this as a way to create a win-win-win situation.\n","comment_id":"23976","post_id":"6649","user_id":"8892","parent_comment_id":"23971","creation_date":"Friday, August 19, 2016 - 12:41","group_id":"0"}},{"node":{"title":"do you want me to mention","content":"\ndo you want me to mention your name when I do btw?\nI believe that memesis is more important than attribution. A more thorough explanation can be found on the Rolequeer Theory and Practice wiki, for those curious, but the takeaway point is that I hope your priority will effectively conveying the message and purpose of the tool. Attribution is nice and can often even be beneficial, but not always, and when that's not so, mentioning names should be a very distant second priority.\nI can try to keep a lookout for use cases and useful information\/articles etc. Maybe also do some advocacy for it by including it in public presentations\nThat's cool. Thanks. You can also join up in the public developer's chat on Gitter. You don't have to stay there all time, important announcements will get emailed to you. Just having more people in there makes it at least look like the project is growing. :)\nI had a chat with the Woodbine crew about setting up an event at Woodbine around autonomy, health and interdependency. A convening, but not just for talking.\nThat sounds fun. If by \"at Woodbine\" you mean in NYC, then with enough advance warning I might be able to attend personally. Keep me in the loop about this?\n","comment_id":"23975","post_id":"6649","user_id":"8892","parent_comment_id":"23970","creation_date":"Friday, August 19, 2016 - 12:33","group_id":"0"}},{"node":{"title":"Inspiring","content":"\nThank\u00a0you for sharing\u00a0Noemi, that's also quite an interesting approach. Biotech is still in the early stage, but it should be possible. What I am especially curious about is how we can cooperate with different actors on the controversial issues, like GMO. We don't pick any side, because we don't think there should be polarized\u00a0sides: we\u00a0want to tell a nuanced story, which is the hardest task of all. But as soon as you involve big biotech, concerned citizens might drop out and self-censor. The same could happen vice versa. Perhaps it is ideal to steer clear of the subject for a while, there are so many other interesting things to talk about anyway.\nI've not met @Rozina, but I saw her around on some events in Brussels.\u00a0I believe she was talking about schools for children with special needs, if I am not mistaken. But perhaps the same holds true for standard schools, we will try and find out :)\n","comment_id":"23974","post_id":"6640","user_id":"8889","parent_comment_id":"23958","creation_date":"Friday, August 19, 2016 - 09:21","group_id":"0"}},{"node":{"title":"Drupal to buoy, maybe the other way around?","content":"\nI know someone in the community produced a wordpress plugin from Edgesense, a piece of software which was only available as a drupal module. So they must have looked into the drupal-wordpress differences. @Alberto you know who this is, can you remember the handle?\n","comment_id":"23971","post_id":"6649","user_id":"45","parent_comment_id":"23962","creation_date":"Thursday, August 18, 2016 - 22:37","group_id":"0"}},{"node":{"title":"The social contract, self care etc","content":"\nAm checking out the links you shared above for where and how to contribute to buoy. Code is not possible for me. But I can try to keep a lookout for use cases and useful information\/articles etc. Maybe also do some advocacy for it by including it in public presentations (do you want me to mention your name when I do btw? Didn't at re:publica - @Mike Gogulski had just pinged me about it ).\nSo two things.\n1) I had a chat with the Woodbine crew about setting up an event at Woodbine around autonomy, health and interdependency. A convening, but not just for talking. A combination of showcasing\/discovering some relevant OS tools, aggregating information resources and working out some social contract\/model for supporting work on their further development. I am up for putting time into making it happen.\n2) I came across an article which you\/me\/others may find useful. One of the comments had a link to an information resource that @Woodbinehealth might want to include in their resource centre:\u00a0 \"a page called ThereIsHelp with pointers and resources for people worldwide dealing with suicidal feelings or a variety of other complicated mental health issues\". I also found it useful for unpacking questions relebant to Boy and community driven care in general...In Wikipedia is not therapy,\u00a0 the author decribes the emergency response system the Wikipedia foundation has put in place for dealing with signals of distress amongst editors:\n\"This emergency response system was established in 2010 by Philippe Beaudette, the former director of community advocacy who recently left the Foundation to work at Reddit. On his LinkedIn profile, Beaudette notes that during his seven years overseeing the various Wikimedia communities, he and his team responded to almost 500 threats of suicide and other imminent harm to people and property. A recent report from the Foundation\u2019s talent and culture team noted that, in one quarter, they handled five suicide cases that were escalated through the emergency email address.\n\u201cIt\u2019s a stressful thing, for sure,\u201d Earley says. \u201cMy blood pressure goes up. It can catch me at any hour of the day. I do feel the weight of dealing with that. But it\u2019s definitely something that feels like it\u2019s important to do. We have the technical infrastructure in place to make it as painless as possible on our end.\u201d\nHow do we effectively deal with the additional preassure, or emotional stress, that this kind of commitment brings into our lives?\n\u00a0\n\u00a0\n","comment_id":"23970","post_id":"6649","user_id":"45","parent_comment_id":"23948","creation_date":"Thursday, August 18, 2016 - 22:33","group_id":"0"}},{"node":{"title":"Keep an eye out for opportunities","content":"\nWith a bit of luck we might be doing stuff in Ireland in 2017. This might be a chance to scrape off some resources for a Buoy prototype, with would probably include a Drupal module. Let's stay alert.\u00a0\n","comment_id":"23965","post_id":"6649","user_id":"34","parent_comment_id":"23962","creation_date":"Thursday, August 18, 2016 - 15:02","group_id":"0"}},{"node":{"title":"Add junkyards","content":"\nand you got yourself a\u00a0Med Makers revolution :-)\u00a0\n","comment_id":"23964","post_id":"6590","user_id":"32","parent_comment_id":"23719","creation_date":"Thursday, August 18, 2016 - 09:03","group_id":"0"}},{"node":{"title":"How much access is real access than?","content":"\nThanks Marco, many money quotes in your comment !!\nMy understanding of Rune's post is that\u00a0research admittedly needs to be refined\u00a0(\"as long as assistive technology is not used it\u2019s difficult to identify exactly where to improve it\") in ways that are more just to the users than current commercial research and the incentives that exist in that space.\u00a0Since research lab +\u00a0home brewed medical inventions and\u00a0tools exist already and provide healthy tinkering and reflection\u00a0around problems, then the easier question is then how to enlarge access\u00a0to this kind of knowledge, enable more people to be players.\u00a0More access could mean better quality and approach to safeguards, and then markets (should) follow. Hopefully before research and money go\u00a0down the drain or results made irrelevant.\n","comment_id":"23963","post_id":"6603","user_id":"32","parent_comment_id":"23839","creation_date":"Thursday, August 18, 2016 - 09:00","group_id":"0"}},{"node":{"title":"Scale was a consideration","content":"\nScale was a consideration from very early on, and indeed the current state of Buoy's implementation reflects a rejection of the typical technocapitalist approach of creating a single, highly-scalable centralized service endpoint for all interaction. It's really encouraging to me that you seem to have immediately understood the importance of smaller-scale yet socially-proximous user connections. Most people with a tech background instantly reject this design, because it does not match what they are used to seeing Google, Facebook, Twitter, and other large corporate networks do. Of course, those networks are not interested in user empowerment, but rather control over users (user domination), so the model is clearly different.\nWith regards to trying Buoy out with Edgeryder's community and its possible use cases, two things come to mind.\nFirst, yes, Buoy as a suicide prevention tool was one of the use cases we designed for early on. You can have a look at some more use cases along with preliminary Personas we had started to document on our wiki. These are two areas where people who do not want or do not know how to write program code can really help the project out by contributing their own ideas in a manner that will be useful to fellow developers.\nSecond, I noticed that Edgeryders.eu is built on the Drupal CMS. Right now, the only implementation of Buoy is as a WordPress plugin, but I have been wanting to create a Drupal module for it, too. I am not as familiar with Drupal as I am with WordPress, but I have wanted a reason to get back into Drupal development for a while. Also, in my experience, Drupal is the second most popular Web-based platform for the kinds of small- to medium-sized organizations and community groups that Buoy is meant to serve (second only to WordPress). Implementing the existing Buoy functionality as a Drupal module could be really help broaden the reach of the project to more groups, as well as offer an opportunity to rework (\"refactor\") some of the Buoy code itself.\nI don't really want to embark on this myself since it's a pretty big task, but if there's interest from other developers in doing such a thing, I would be happy to collaborate on that work with someone (or a group of people) from the Edgeryders community. To anyone reading this, the best and easier way to express an interest in this is to hop into our public chat room and ping me there. (I'm @meitar)\n","comment_id":"23962","post_id":"6649","user_id":"8892","parent_comment_id":"23959","creation_date":"Thursday, August 18, 2016 - 07:40","group_id":"0"}},{"node":{"title":"Care to join the Open&Change Workshop in Brussels","content":"\nHello Rozina,\u00a0\nreally nice to read about your approach to redesign communities and to get more involvement on a local level. Great that such initiative gets the respons of the local autority. Would you be interested to share your story at the Brussels Open&Change Workshop, it would be nice to hear your story and share it with other people to craft new durable solutions out of it. You can find the mapping of all contacted persons that i did at the moment here:\u00a0https:\/\/metamaps.cc\/maps\/2175 , and you can contact me through mail if you want to discuss further.\nevent page:\u00a0https:\/\/www.facebook.com\/events\/280924708934187\/\nKindly regards\n","comment_id":"23961","post_id":"6642","user_id":"8743","parent_comment_id":"0","creation_date":"Wednesday, August 17, 2016 - 15:00","group_id":"0"}},{"node":{"title":"Hi Alex,\u00a0","content":"\nHi Alex,\u00a0\nThanks for your insight and your positive comments.\u00a0\nYes, I agree that it's best to run the BID projects with the BID task force community rather than soley relying on the politicians to lead. Although, at the moment it's still quite challenging for politicians here in Belgium to change the cultural mindset of opening up to public\/private\/citizen partnerships. Hence why some initiatives have been at grass roots level with the community itself. I sincerely hope this will change over time.\nI have linked to many of the UK BIDs and they have been incredibly supportive. Also, recently in Edinburgh there was the World Towns Leadership Summit, in which one of the organizers was BIDs Scotland along with IDA of Northern America. It was incredible to hear the stories of what some of the partnerships had indeed achieved in their communities. From Capetown to Copenhagen, it was quite an eye opener.\u00a0\nI hope you don't mind if I reach out to you, with your experience and knowledge of the BIDs in your area in the future.\nThanks again!\u00a0\nRozina\u00a0\n","comment_id":"23960","post_id":"6642","user_id":"8898","parent_comment_id":"23887","creation_date":"Wednesday, August 17, 2016 - 13:33","group_id":"0"}},{"node":{"title":"Impressed","content":"\nMore power to you, @maymay . This is a very well-thought through service. What I love most is your response team concept: it works even at the level of, say, 10 friends that live in a 2 km radius from each other. Then, like the best networks, it can be\u00a0scale-free:\u00a0suppose I am using Buoy here in Brussels, I have my little response team etc. Next up, I\u00a0visit my friend in Milano; suddenly I am detached from my response team, but if my friend is also using Buoy, she and I can be on each other's response team. Also, she can ask her own response team to opt in in my own, and viceversa I will be part of theirs. Voil\u00e0: everyone in my friend's response team now has skeletal Buoy coverage should they ever come to Brussels \u2013 and of course I can ask my response team to add them, too. The scale-freedom there is that my friend and I become hubs, stringing together my local network in Brussels and hers in Milano. I can't emphasize how powerful this is: Buoy is viable at a small scale.\u00a0\nI am definitely intrigued by the idea of trying it out when we next deploy in a geographically defined space: this could be Galway, actually. I see in your FAQs that you have already thought of Buoy as a suicide prevention tool. This meets a pressing need in Galway and the West of Ireland in general. Ping @Thom Stewart and @Finbar247 \u2013 I think Bernard McGlinchey is also on Edgeryders, but I cannot find his handle.\u00a0\nI would never presume to undermine your militant stance. Whatever your reasons, they led you this far, and this is more than good enough as far as I am concerned.\u00a0\n","comment_id":"23959","post_id":"6649","user_id":"34","parent_comment_id":"23948","creation_date":"Wednesday, August 17, 2016 - 10:49","group_id":"0"}},{"node":{"title":"For school collaborations parents make for a great ally.","content":"\n@WinniePoncelet, yes I've played CLUEDO but it's never occured to me that it's a good edu resource. Whoa.\nMy mom is a computer science teacher.\u00a0She is organising tech contests and involves IT companies who are very much on the lookout for future hires. They not only sponsor by providing the prizes, but also\u00a0come and become juries in the contests, and enjoy meeting bright young people. True, they are true moneybags, but thriving businesses are probably not a rarity.\u00a0Also, the Education Ministry\u00a0has passed a provision saying that\u00a0a week every year in spring\u00a0all schools\u00a0have the opportunity to insert more creative and unconventional programming in their schedule: \"Different School\" is called\u00a0- completely decentralized, so teachers themselves select and organise\u00a0activities for their pupils - including taking them outside school.\nHave you met @Rozina? She\u00a0mentioned\u00a0that the school has no time to think extracurricularly but if parents or other supporters can lead, than they are up for hosting more creative things.. \u00a0\n","comment_id":"23958","post_id":"6640","user_id":"32","parent_comment_id":"23914","creation_date":"Wednesday, August 17, 2016 - 10:26","group_id":"0"}},{"node":{"title":"Thank you for the feedback","content":"\nThank you for the feedback and your support!!!\n","comment_id":"23957","post_id":"6419","user_id":"8590","parent_comment_id":"23954","creation_date":"Wednesday, August 17, 2016 - 10:01","group_id":"0"}},{"node":{"title":"+1 to different ways of explaining what you do","content":"\nHi and needless to say seeing the super response you're getting already, you guys rock.\nJust to agree that finding a common language might go a long way with groups that may not be as radical\/ adamant in their approaches to not cooperate with state led operations, but rather expose them as irrelevant. I find this quite strong and while some edgeryders will resonate immediately, the rest of us may not know just how to engage even if they resonate with the premises (and keep a different view on the ways, for example me, I got the most out of\u00a0the FLOSS vanilla interview).\u00a0\nAnother group with which\u00a0you guys could click immediately is the Tbilisi activists\u00a0led by @Nick Davitashvili,\u00a0who broke new ground in their own way of enabling flood relief efforts or\u00a0stopping the construction in their largest city park. There could be\u00a0potential for new tech \u00a0- they had to make up a process for coordination, so they\u00a0enabled coordination\u00a0through an emergency twitter account texting to dumbphones and worked exceptionally well, as Nick's explained in his tedx. But this wasn't p2p, only\u00a0for\u00a0broadcasting as far as I understood..\u00a0\n","comment_id":"23955","post_id":"6649","user_id":"32","parent_comment_id":"23948","creation_date":"Wednesday, August 17, 2016 - 08:58","group_id":"0"}},{"node":{"title":"Bravo for campaign!","content":"\n@MarieScheurer @Cindy @HoneyMk well done! With Edgeryders members from all over we will spread the word, let's see if it helps the project.\u00a0\n","comment_id":"23954","post_id":"6419","user_id":"32","parent_comment_id":"23120","creation_date":"Wednesday, August 17, 2016 - 08:29","group_id":"0"}},{"node":{"title":"How do basic needs fit into autonomous health advocacy?","content":"\nI really like what you've written and am excited to learn about the existence of the Autonomy General Assembly. I think this sort of advocacy is critical and echo @natalia-skoczylas when she observes that this sort of work sounds like Bookchin's suggestions for a method to free ourselves from Statist and corporate rulers. I think this is one of the most practical and underappreciated methods to grow sustainable, resilient, and free communities.\nAlso, while I understand the importance of involving \"alternative\" modalities into healthcare, I am curious about whether your collective has considered how even more basic needs\u2014such as literal access to food and shelter\u2014affect healthcare more broadly. I understand that there is are sensible distinctions to be drawn between, for example, addressing lack of shelter (homelessness\/houselessness) and what is more traditionally thought of as \"healthcare,\" but I also speak from experience when I say that the stress of being unsheltered is right up there as one of the worst kinds of stress along with the stress of having a more concrete \"health issue.\"\nIn what ways do the more foundational elements of human care fit into Woodbine's vision for \"holistic\" healthcare? Collaborations with shelters and food rescue drives? A culture of hospitality? All of the above? What do you see as the most important immediate connections between these \"lower levels of Maslow's Hierarchy\" and what some would call the more discretionary elements of health, after basic survival needs are met, like massages and physical exercise outside of the context of employed manual labor?\n","comment_id":"23953","post_id":"6644","user_id":"8892","parent_comment_id":"0","creation_date":"Wednesday, August 17, 2016 - 02:57","group_id":"0"}},{"node":{"title":"Oh, and regarding \"what","content":"\nOh, and regarding \"what criteria\" I apply, I'm sorry, I forgot to answer:\nalso what criteria do you apply when you pick some of these and make work?\u00a0\nThe answer to this is also informal. There are only two criteria:\n\nDo I have the resources necessary actually produce an implementation, and\nDoes the suggested feature empower end-users and vulnerable populations more than it empowers service providers or large institutions?\n\nWith respect to number 1, if I do not have the resources (knowledge, time, money, shelter, mental well-being, etc.) necessary to actually produce an implementation then I create an enahncement\/feature request ticket on the GitHub issue tracker. You can see all of these tickets (which effectively represent a to-do list) on GitHub here. If, on the other hand, I do have the required resources to implement a given feature, then I apply the second criteria.\nWith respect to number 2, I make a personal judgement call about what I believe the impact of creating the feature will be. As part of this, I consider who is asking for the feature. If the feature is being suggested by a white man who works at a tech company and does not engage in much activist practice themselves, then I am bluntly far less likely to give that suggestion the benefit of the doubt. For example, almost all of the suggestions to \"integrate 911 and let people call the police\" have come from people matching this description. In contrast, when the suggestion comes from someone who I know as part of a local activist collective, as the example I gave in my previous reply about the Celly replacement, then I may not even bother to create a GitHub ticket because I simply immediately begin working on the feature.\nAnother part of this number 2 criteria relates to how the implementation actually works. For example, the SMS\/txt broadcast channel uses IMAP behind the scenes specifically so that non-Google\/non-Microsoft email services can be used. While I expect most people will still use a GMail account or similar to enable this feature for their own teams, it's important to me that features built into Buoy do not force end-users towards proprietary, and thus obviously predatory, services. In other words, feature suggestions that necessitate the use of proprietary\/predatory services over the use of technologies that can be self-owned and self-operated are more likely to find themselves unimplemented, because I will reject them philosophically.\n","comment_id":"23952","post_id":"6649","user_id":"8892","parent_comment_id":"23949","creation_date":"Wednesday, August 17, 2016 - 02:02","group_id":"0"}},{"node":{"title":"Thanks, Natalia. :) I","content":"\nThanks, Natalia. :) I appreciate offers for shelter very much.\nYou asked how I decide on what functionalities to add to Buoy. The answer is that there is no formal decision making process. What usually happens is someone with a need expresses that need to me in some manner, we converse about it over some communication medium, and then I add some functionality that hopefully meets that need. It's very do-ocratic. An example will help clarify this.\nThree weeks ago someone came to me in person and expressed concern that Celly, a SMS\/txt messaging service that saw its popularity skyrocket thanks to its use by the Occupy Wall Street protest groups, was no longer suitable for their small group of activists. Two reasons were given: first, the service discontinued offering their free tier product line, and second, Celly began requiring users to install a smartphone app in order to send SMS messages. This causes two big problems for the activist who approached me. First, they have no money to afford to pay for Celly. Second, a significant percentage of their membership does not own smartphones, but rather flip-phones. These two issues are of course related: the local activists are all poor, working-class people.\nI asked them some questions about what they had been using Celly for. This conversation lead to a better understanding of their use cases. Effectively, they had been using Celly as a kind of SMS\/txt broadcast channel for the group, so that one member of their collective to send a single txt message and that txt would be received by everyone else in the collective. The collective is small (less than 20 people).\nOver the next week (two weeks ago, now), I wrote a feature called the Team SMS\/txt broadcast channel into the functionality offered by Buoy Teams. It meets the criteria the activist collective needs, including the ability to use it forever with no additional financial cost. One week ago, groups using Buoy alreay saw an update in their dashboards and could download and install the new feature with one click.\nThat's the usual process.\nOf course, I have created more \"formal\" channels for receiving feedback. These include the GitHub issue tracker, intended mostly for coordination amongst developers (and I include people who conduct user testing, writing documentation, and other non-code tasks to be \"developers\"), the WordPress plugin support forum, intended mostly for end-user-to-end-user volunteer support, our public Gitter chat room, intended as a way to get live support if someone is available to offer it, and our dedicated project email address available with PGP encryption, intended for those who need more assurance privacy but still need a support channel.\nIn practice, however, I am the only developer and have written virtually every line of Buoy's code myself, so GitHub is mostly just me talking to myself, the WordPress plugin support forum has seen some use but is mostly me answering questions by end-users instead of users helping one another out, the public Gitter chat room is primarily me making announcements about my own work to people who are lurking and watching me do so, and the dedicated email address is dormant and receives no mail.\nI would love for all of these channels to get more use, but the reality is that basically no one pays any attention to what I've done beyond nodding and smiling and expressing how good an idea they think this is to me when they hear of it. :\\\nTo wit, that story of the SMS broadcast channel feature that now exists in Buoy? After I discussed the use case with the person who approached me about needing such a feature that could replace Celly, I have not heard from that person on the matter again, despite repeateded attempts to communicate about it over the two weeks since the feature has been implemented. I say this not to disparage this person themselves, but rather to point out a pattern relating to your question, about how I receive feedback. The pattern is: I receive feedback through a variety of means, and am generally able to very rapidly translate such feedback into working features that could be used immediately by the people who approach me. In practice, although the people I've communicated with are eager to express to me what they need, once I actually implement it, I never hear from them about it again.\nThis makes iterative improvement difficult for somewhat obvious reasons.\n","comment_id":"23951","post_id":"6649","user_id":"8892","parent_comment_id":"23949","creation_date":"Wednesday, August 17, 2016 - 01:34","group_id":"0"}},{"node":{"title":"Thank you for this story, ","content":"\nThank you for this story, @maymay - I'd like to ask you about the ways in which you decide on what functionalities to add to the service? Both on receiving the feedback and requests from the users, but also what criteria do you apply when you pick some of these and make work?\u00a0\nAnd if you ever want a couch somewhere in Europe, I'd be happy to provide you with one;) I constantly move, but usually there is space for guests where I live.\u00a0\n\u00a0\n","comment_id":"23949","post_id":"6649","user_id":"678","parent_comment_id":"0","creation_date":"Tuesday, August 16, 2016 - 15:38","group_id":"0"}},{"node":{"title":"Thanks, Alberto.","content":"\nThanks, Alberto.\nYou're right, we can describe Buoy a number of ways. In fact, depending on our audience, we have described Buoy and what it does very differently at different times. If this interests you, I encourage you to watch our interview on FLOSS Weekly, a technology show where we were interviewed about Buoy. Since the show's audience and the culture of Silicon Valley to which it caters is primarily infested with cishet white men, many of whom do not want to accept the obvious truth that the police are government-funded domestic terrorist organizations, I softed my language considerably and spoke of Buoy as primarily a form of social innovation exactly in the way you describe.\nSo while I think you're absolutely right, Buoy can be described as and is genuinely useful as a kind of social complement to existing policing services, I am adamant in my militant stance advocating for the abolition of all police, all prisons, and all Nation States in order to preempt any confusion about whether or not I will willingly collaborate with efforts to, for instance, \"integrate 911 as an optional feature for Buoy, too.\" I have been asked to do this many times, but I will never agree to do it.\nYou might also want to read our Frequently Asked Questions page, which includes a question called \"What if people send alerts in situations that aren't \"real\" emergencies?\" which also talks about the \"social innovation\" angle for Buoy in contrast to a police abolition approach. Ultimately, the two can work together, but only if Buoy and its developers remain committed to the principle of non-cooperation with entirely evil militarized occupying armies, such as police forces.\nQuestion: would it make any sense to prototype this on Edgeryders? Probably not, we are too geographically sparse... any brilliant idea?\nFor what it's worth, I answered a portion of this in my comment above when I wrote that \"it's also possible for a group (such as Woodbine) to host an instane of the Buoy software but invite other groups to make use of it, even if they are not near the Woodbine clinic itself.\" So it's possible that Edgeryders could install Buoy and try making use of it. I would be happy to assist with that.\nRight now, what geographically sparse communities of interest like Edgeryders can do to help (as individual community members) more is to join me and my fellow collaborators in improving the software by contributing suggestions, bug reports, better documentation, and so on. We have a public chat room where we talk about this and help one another get familiar with the software. You are welcome to join anytime: https:\/\/gitter.im\/betterangels\/buoy\nWe are also big on technical skill share, so if you want to learn how to become more proficient with your technology, we offer a very friendly atmosphere where we teach one another more tech skills as part of working on Buoy together.\n\u00a0\n","comment_id":"23948","post_id":"6649","user_id":"8892","parent_comment_id":"23946","creation_date":"Tuesday, August 16, 2016 - 01:15","group_id":"0"}},{"node":{"title":"Ping @Woodbinehealth, I think","content":"\nPing @Woodbinehealth, I think you guys should have a look at this.\nI took a look at Woodbine Health's challenge-response post and definitely see some complementary challenges with what I've written above and what they're doing. I've reached out to them privately, as well, in the hopes of keeping more lines of communication open for collaboration.\nWhat if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?\nI don't know if this was directed at me, but I wanted to chime in anyway because it's a great idea that showcases the best kind of melding between the Internet's ability to cross geographical boundaries and the real need (often overlooked by head-in-the-clouds technologists) for having physical-world networks of people in close proximity to one another.\nOne of the things I would like to see Buoy as a project develop more of as time goes on are tools for getting knowledge\/skill dissemination (similar to what the Woodbine folks spoke of) in a \"point-of-need\" manner. By this I mean being able to forward or relay calls for help that require particular skills to the people who have those skills even if those people are not immediately known by the person in crisis. This is actually one reason why I envision Buoy primarily as a logistical and coordination support tool for existing volunteer-run community health or support groups, rather than a kind of individualistic technological solutionism proferred by these \"there's an app for that!\" product marketing campaigns.\nThere are already tickets in our issue tracker for allowing Buoy users to add things like skills listings to their profiles, but we have so far only prioritized the things that real users are actually telling us that they need. Since, for now, most users know one another and what their skills are well already, we haven't done any of this. But it's something to think about in terms of growing a user base across more geographically disperse regions.\nAnother thought with respect to a more \"distributed presence\" is that it's also possible for a group (such as Woodbine) to host an instane of the Buoy software but invite other groups to make use of it, even if they are not near the Woodbine clinic itself. Buoy has no geographic limitations itself (it uses OpenStreetMaps for geographical data, which covers almost the entire planet), and a single instance's use is only limited by who is actually using it.\nOn that note, I am already working in collaboration with the Glocal Coop as a contributor to their Activist Network Platform (ANP). This is a tool that allows larger organizations such as groups with national presence and individual regional chapters to produce a network of related websites. We are discussing the possibility of adding Buoy as a default or an optional add-on to that ANP. If this happens, it would offer opportunities for cross-Buoy technical integration that could be very valuable, too.\nAs for \"how could a community support the developers working on it?\" I hear this question as mostly asking about money and so on, but I'd like to point out that the most progress that has been made on Buoy happened during times when I was sleeping in a friend's closet on my sleeping pad. If I am able to nurture friendships with fellow activists who are able to shelter and possibly feed me, who are willing to try experimenting with the tools I write, I make much more sustained progress on a tool. Money helps, of course, but ultimately I spent all money that I gete on food and shelter anyway, so if I can get reliable food and shelter directly, what use have I for money?\nAnother member of the community who might be interested in this is @Eireann Leverett who does information security and has experience with tech-related privacy\/security issues which is a concern.\nI took a look at Eireann's profile and what piqued my interest was the line \"He likes teaching the basics, and learning the obscure.\" I feel similar, and I would love the opportunity to skillshare\/collaborate with more folks with that mindset who have an interest in various infosec disciplines.\n","comment_id":"23947","post_id":"6649","user_id":"8892","parent_comment_id":"23939","creation_date":"Tuesday, August 16, 2016 - 00:58","group_id":"0"}},{"node":{"title":"Way to go! ","content":"\nBuoy makes a ton of sense, @maymay . Congratulations on the idea. By the way, you can spin it either way: it works as politically loaded displacement of state activities, but it also works as \"social innovation\"; people helping each other as a\u00a0complement\u00a0to public sector service. The police can be out fighting crime, but if you are being bullied in school you probably won't call the cops. And this is without even considering that, in some circumstances, response has to be fast to be at all useful!\nQuestion: would it make any sense to prototype this on Edgeryders? Probably not, we are too geographically sparse... any brilliant idea?\nBy the way: I love the 200 anarchist-led refugees centres in Greece. I would love to see a writeup of that under opencare. @Pavlos , do we know anyone? I see two of them are in Thessaloniki...\u00a0\n","comment_id":"23946","post_id":"6649","user_id":"34","parent_comment_id":"0","creation_date":"Monday, August 15, 2016 - 14:44","group_id":"0"}},{"node":{"title":"\"Appropriate technology\"!","content":"\nOur friend @LucasG has this concept of appropriate technology, which means \"as simple as possible\". It seems that Willkomm has hit on much the same idea. A lot of the appropriate tech is detailed here:\u00a0http:\/\/www.appropedia.org\/Welcome_to_Appropedia\n","comment_id":"23945","post_id":"6645","user_id":"34","parent_comment_id":"0","creation_date":"Monday, August 15, 2016 - 14:34","group_id":"5954"}},{"node":{"title":"\"Appropriate technology\"!","content":"\nOur friend @LucasG has this concept of appropriate technology, which means \"as simple as possible\". It seems that Willkomm has hit on much the same idea. A lot of the appropriate tech is detailed here:\u00a0http:\/\/www.appropedia.org\/Welcome_to_Appropedia\n","comment_id":"23945","post_id":"6645","user_id":"34","parent_comment_id":"0","creation_date":"Monday, August 15, 2016 - 14:34","group_id":"5954"}},{"node":{"title":"What would be even more interesting..","content":"\n..I believe is\u00a0learning about if and how people are using it, and whether this can be connected with their medical charts, treatment and advice\u00a0in any way. The problem identified by @Rune in his piece would\u00a0weigh quite a lot on the way these ingenious and affordable devices are presented as community led solutions:\nThe research contribute with important results, but obviously there is a problem of transferring the research results into the benefit of people with physical challenges - Doctor, could you hack me a neuroprosthesis please?\n","comment_id":"23942","post_id":"6531","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 15, 2016 - 13:33","group_id":"0"}},{"node":{"title":"One more thing ","content":"\nThere is a very good story on the New York Times about a guy who dived into the accessible data about patients and used certain patterns to start fixing the most obvious failures of the health care system. For example, he looked at which buildings in the city received huge amount of emergency visits and hospital admissions - and started solving the problem by opening a practice inside the very building, where patients are taught about healthy habits and watched over regularly, successfully decreasing the\u00a0number of emergencies and helping save a lot of money. It sounds very much like Bookchin\u00a0to me: small communities tackling local problems, using\u00a0collectives\u00a0procedures and new technology.\n\u00a0\nfingers crossed for your work, it really looks promising;)\n","comment_id":"23941","post_id":"6644","user_id":"678","parent_comment_id":"0","creation_date":"Monday, August 15, 2016 - 13:07","group_id":"0"}},{"node":{"title":"Building a community of users & contributors ","content":"\nPing @Woodbinehealth, I think you guys should have a look at this.\nOne of the challenges of alternative care provision is evolving tools that enable it around the needs of communities that use them, and support those who develop them.\u00a0I had a conversation with Amir Hannan, a GP working in the UK, about how\u00a0 chronic care requires patients to self-manage for good health outcomes (writeup coming soon). Over 15 years he has built a practice based website to encourage an support his patents gain a better understanding of their health to better enable automy and self-care. You can see the site itself here: www.htmc.co.uk (especially the \"Common Problems you can solve yourself section - see menu on the left)\"...\nAfter reading both your post and @maymay above I started thinking about something that maybe we could build into the OPENandChange process.\nWhat if the health resource centre you are building could have a distributed presence (and network of contributors) as a compliment to the physical space itself? And how could a community support the developers working on it?\nI think cracking this could unlock a lot of community knowledge and support, as well as free up resources for providing health and soccial care services to a currently underserved individuals\/ communities. Plus it could care for the (far too few) people with deep tech skills that are dedicating themselves to building tools contributing towards fixing the kinds of community resilience challenges we are attempting to tackle...\nAnother member of the community who might be interested in this is @Eireann Leverett who does information security and has experience with tech-related privacy\/security issues which is a concern. And not just for high risk users e.g. activists...\n\u00a0\n\u00a0\n","comment_id":"23939","post_id":"6649","user_id":"45","parent_comment_id":"0","creation_date":"Monday, August 15, 2016 - 12:20","group_id":"0"}},{"node":{"title":"Maybe ask the security wizard? :)","content":"\nHi Michel, nice to read you. Regarding your question about the security aspects of AsthmaPI, maybe @Eireann Leverett has come across it or an share some thoughts around how to approach security in this context?\u00a0 You can read about his work here.\n","comment_id":"23938","post_id":"6552","user_id":"45","parent_comment_id":"23700","creation_date":"Monday, August 15, 2016 - 11:28","group_id":"0"}},{"node":{"title":"Your balancing act","content":"\nHi @Woodbinehealth, you've surely raised the bar for us when talking about health autonomy. Not much to add after the insightful comments above, but wanted to commend you for what I see is a very grounded, mixed\u00a0approach\u00a0- setting up complementary infrastructure\u00a0to the current state provided one, enabling\u00a0training for non-medical workers,\u00a0prevention coupled with basic treatment..\u00a0\nAt the same time you are adamant about the need for a radical, revolutionary approach, and this is where you make a very clear standpoint which to people like Marco above is intriguing.\u00a0\nAs to your question \"How do you work with or around licensures\/certifications to provide safe care?\" perhaps @steelweaver and his\u00a0experience can help.\u00a0He is\u00a0in the process of setting up an acupuncture\u00a0clinic at the edge of (commercial) regulations.\n","comment_id":"23934","post_id":"6644","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 15, 2016 - 08:42","group_id":"0"}},{"node":{"title":"Open source and DIY tools as the future..","content":"\nHi @Moushira, long time no seeing! Reading your post about this\u00a0case\u00a0also spotted by @Alberto a while ago (Hacking Diabetes) makes me think that between Night Scouts here, the connected diy insulin pumping device,\u00a0open sourcing pacemakers\u00a0and many others we're slowly discovering,\u00a0making people autonomous with respect to their health is only a matter of time and reach. And it's not just vanilla self-assistance, this is real medical treatment.\nIt would be great to be able to contact\u00a0one of the Night Scout community members (users), do you know someone or should we try to get in touch and invite them to OpenCare? We can do this by\u00a0offering\u00a0a\u00a0writing fellowship opportunity. Let me know!\n","comment_id":"23933","post_id":"6539","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, August 14, 2016 - 19:59","group_id":"0"}},{"node":{"title":"Continue and learn yourself some programming skills :-)","content":"\nDear lovely people :-)\n\nWe started to create an online curriculum that can teach you programming and goes from \"what's a browser\" to \"how to build an app\". It's free and you can have online chat support and if you happen to be in berlin, on tuesdays and fridays you can have face2face support at a local meetup\u00a0:-)\n\nIn the future you will be equipped to start your self employed career - either by bootstrapping your own app\/company or working as a freelance developer for agencies\/clients\/customer or whatever else you have in mind. You can work from anywhere if you have a laptop with an internet connection.\n\nCheck:\n1. The Curriculum\nhttps:\/\/www.youtube.com\/playlist...\n\n2. The Support Chat\nhttps:\/\/gitter.im\/codingamigos\/learners\n\n3. The regular berlin bases support face2face meetup\nhttp:\/\/www.meetup.com\/de-DE\/codingamigos\/\n\nDon't count on the government to magically create jobs. Get yourself some digital skills and start RIGHT NOW!\u00a0:-)\n\nHope to see some of you people\u00a0in the chat or in person at one of our regular meetups :-)\n","comment_id":"23931","post_id":"6514","user_id":"8907","parent_comment_id":"0","creation_date":"Sunday, August 14, 2016 - 18:38","group_id":"0"}},{"node":{"title":"Very promising start! ","content":"\nA #win already.. \u00a0Congrats for the future work!\u00a0\nWill try to give your start next campaign an even bigger push over the next weeks, \u00a0well done!\u00a0\n","comment_id":"23929","post_id":"6514","user_id":"32","parent_comment_id":"23927","creation_date":"Sunday, August 14, 2016 - 14:29","group_id":"0"}},{"node":{"title":"Thanks for the feedback!","content":"\nHey everyone! We\u00b4re really happy about the\u00a0feedback! thanks a lot :)\nFrom September i\u00b4ll be working at the ROC21 Project (http:\/\/roc21.openstate.cc). As I\u00a0already gained\u00a0a little bit experience at the SAVA project, they asked me to be part of the Team. I\u00b4m looking forward to that, because now we can think in bigger scales. We will try to build up a community inside the camp, where everyone is an active part. Thinks like an Urban Garden on top of the building or\u00a0an actual woodworkshop are under discussion. But there are a lot of issues to face, for example how to motivate people @Natalia Skoczylas it could go in that direction. Would be great to find some kind of reward for peoples work, even if it\u00b4s not money. I\u00b4ll keep you guys updated!\nBesides that we still want to realise our modular furniture system at the ICC Berlin. The Malteser are very interested too and already said that 30 of them will be there and help with the workshop!\u00a0We might get a sponsorship, but it would still be great if we could raise the money via our startnext Campaign. We\u00b4re still happy about support :)! https:\/\/www.startnext.com\/sava\u00a0\nAlso the ROC21 Project will benefit from the experience we\u00b4ll make at the Workshop.\u00a0\n\u00a0\n","comment_id":"23927","post_id":"6514","user_id":"8589","parent_comment_id":"0","creation_date":"Sunday, August 14, 2016 - 13:43","group_id":"0"}},{"node":{"title":"Interesting view on autonomy","content":"\n@Alberto. \u00a0Thank you for sharing that article and your comments. \u00a0I must admit, being here in the US and have\u00a0gone to school near some Amish communities, I was quite surprised to see many corrollaries with our work. \u00a0There perhaps is a strong negative stereotype ingrained in our culture against these \"plain type societies\", mainly because of disagreements on their heirarchies and religous aspects. \u00a0In addition, across the US, medical students are always taught the example of refusing life saving treatments for children for religous reasons as being paramount to abuse (which can definitely be the case in some instances). \u00a0But the article reminded me of the Zapatista models of healthcare, with a strong emphasis on prevention. \u00a0As to your specific comments, I definitely agree that prevention is paramount and something that we will emphasize. \u00a0But we wanted to differentiate ourselves from other \"wellness groups\" which focus on yoga and massage and nutrition. \u00a0Not to discount them, but the current state of health in the US is that when people do get sick, they are forced to access health institutions. \u00a0Most people do not have ready access to primary care doctors (usual wait time is 3 months) and without insurance, it is too costly. \u00a0Also, many people who do have insurance, have insurance only for emergencies, hence their propensity to go to ERs, which will always be covered. \u00a0And finally, here in NYC, there is always the shadow of Hurricane Sandy which shut down many of the lower Manhatten hospitals, including the large public hospital, essentially limiting people's access to public healthcare for months. \u00a0So in that context, we want to be able to provide some care for people so that their minor health concerns can be treated without having to go to the hospital. \u00a0But obviously always cognizant of our own limitations in care.\u00a0\nThank you again for the comments and I look forward to continuing the conversation!\n\u00a0\n\u00a0\n","comment_id":"23926","post_id":"6644","user_id":"8896","parent_comment_id":"23915","creation_date":"Saturday, August 13, 2016 - 03:36","group_id":"0"}},{"node":{"title":"Introductions maybe?","content":"\nHello Eric, and welcome to Edgeryders.\nIt sounds like you have some experience or interest in setting up this kind of space :)\u00a0 Maybe consider introducing yourself to Yannick and\/or the rest of the community in arrivals?\n\u00a0\n","comment_id":"23924","post_id":"6633","user_id":"45","parent_comment_id":"23911","creation_date":"Friday, August 12, 2016 - 19:47","group_id":"0"}},{"node":{"title":"Well done, very proud of you","content":"\n@Tomma, @dennis, @simon.messmer and Liza. We are now starting to push this out and having discussions with a number of foundations, Charities\u00a0 etc ahead of the #OPENandChange fundraising tour which includes a workshop in Berlin.\nIt's starting to get interesting :)\n\n@UNHCRInnovation https:\/\/t.co\/Scce4LGesV\n\n  \u2014 Khatuna Sandroshvili (@S_Khatuna)\n\n\n August 12, 2016\n\n\n","comment_id":"23923","post_id":"6514","user_id":"45","parent_comment_id":"0","creation_date":"Friday, August 12, 2016 - 19:09","group_id":"0"}},{"node":{"title":"Sharing plans","content":"Hey @Yannick , thanks for your patience in answering all these questions. The question by @Eric Hunting reminded me of a previous experience with a project called the unMonastery. We had the problem of developing a physical space that was meant to connect to a broader community, and the community was physically far from the space.\u00a0\n\nWe discovered that publishing the plans made everything clearer and more concrete, and generated a lot of excitement and emotional attachment. People also started to suggest really cool ideas for furniture.\u00a0\n\n\n","comment_id":"23922","post_id":"6633","user_id":"34","parent_comment_id":"0","creation_date":"Friday, August 12, 2016 - 12:15","group_id":"0"}},{"node":{"title":"Nice to read you. Let's get","content":"\nNice to read you. Let's get in touch via private messages here, or better still by email : dante.monson - at - Gmail - dot - com\nupdate @Yannick : as I replied by smartphone, there was a typo mistake in the email , which I now corrected\n\npps : may be interesting to join the Theory U process for integrating it in a broader perspective ?\nhttps:\/\/reinventingbrussels.wordpress.com\/registration-en\/\n( context : https:\/\/reinventingbrussels.wordpress.com\/registration-en\/ )\n","comment_id":"23897","post_id":"6633","user_id":"366","parent_comment_id":"0","creation_date":"Friday, August 12, 2016 - 00:03","group_id":"0"}},{"node":{"title":"trying to answer all your questions","content":"\nthank you for the in dept questionary.\nWe started doing the bigger work in the building the last couple of weeks. We were happely surprised that the water problem didn't harm the wood that hard. On the first floor we have a sort of chill room that is used as a backstage for the bar downstairs as well, a multi media room with possibility to watch movies or have podcast sessions, a closed room for private meetings and a toilet. The second space is used as recording and repetition space at the moment, but will graduatily become multifunctional too. On the third floor we have a big open space with lots of natural light and a working plumbing system. The electricity has been cleaned and we are installing now new wires. We will install a kitchen in low tech design there and we still have space for other things. On the fourth floor we have access to a roof of 40m2 and also a ceiling that was renewed not that long ago, we only have some problems of mushrooms there that need to be taken care of. On the long term we hope to have complete green energy providers , solar is possible. But also trying to create a consience for not using to much energy. On the fourth floor we hope to bring a sauna, sleeping capsules and also an urban garden on the roof, all this is being analysed at the moment.\nWe have 2 handy mans, a designer, a woodworker and an interieur designer helping in the house at the moment. We also have access to different FabLabs around Brussels that will come help us later on. We maybe going to try to contact the bellastock organization of brussels to work around the industrial resources.\n\u00a0\n","comment_id":"23918","post_id":"6633","user_id":"8743","parent_comment_id":"23911","creation_date":"Thursday, August 11, 2016 - 19:52","group_id":"0"}},{"node":{"title":"On autonomy, prevention and bleeding out money","content":"\nVery interesting @Woodbinehealth , thanks for sharing. We have been talking about autonomy in a health care context mostly influenced by this article about the Amish and their community-based approach to health care. The article is striking on many levels. They use the word \"autonomy\" in the sense of \"a state of\u00a0not\u00a0having to be coupled with the world at large in a way we find troubling.\" Some people in Edgeryders uphold a similar concept, dependency reduction.\nIts implications are manifold (I have made a short summary here, but I would recommend reading the whole article if you have not done it already). But basically, it comes down to emphasizing prevention. Illness is not only bad for the individual, it is a burden for the community. You don't want that, so you try to take responsibility for your health. You adopt a healthy lifestyle: you still might get sick, but at least you'll have down your best, and you will know that the community knows. This is close to your own attitude, if I understand this right.\nWhich brings me to a question: wellness, exercise, nutrition\u00a0are the low hanging fruit, the place where you are likely to get most results per unit of effort. Why not stick to them? Why struggle with licenses and regulatory hurdles?\nAnd again: you mention sustainability, and well you should. Are your present activities sustainable? Or are they bleeding out money?\n\u00a0\n","comment_id":"23915","post_id":"6644","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, August 11, 2016 - 19:00","group_id":"0"}},{"node":{"title":"Yes on both counts","content":"\n@WinniePoncelet I will make sure to let you know. In fact, I could even come just for a visit of ReaGent, it's really close to Brussels. And yes, I will most likely be at the workshop. :-)\n","comment_id":"23914","post_id":"6640","user_id":"34","parent_comment_id":"23910","creation_date":"Thursday, August 11, 2016 - 18:23","group_id":"0"}},{"node":{"title":"Technical Questions","content":"\nCould you please share some details on the physical condition of the Bonifooi building and how, functionally, the space is intended to work? I looked at some street view pictures of the building and it looks in good shape but very old, though the windows look new. How are things on the interior? What is the composition of the building structure? What utilities are there, and are they updated? What sort of wiring and plumbing? How are the floors set out and are they partitioned? Do you have roof access and what is it like?\nHow do you intended to use the space? Will people live there, in a coliving manner? Will there be a workshop, kitchen, studio, urban farm, etc.? Do you intend to do any sort of light production? Your experience with the N55 spacefram bike suggests you might be working with those and similar constructions.\u00a0Does the city\/landowner\u00a0allow you to use wind and solar?\u00a0\nWhat sort of building resources do you have at-hand in your group. Is there fab lab access? People with wood or metalworking skills?\u00a0Is there some good source of industrial cast-offs nearby?\u00a0\n","comment_id":"23911","post_id":"6633","user_id":"8900","parent_comment_id":"0","creation_date":"Thursday, August 11, 2016 - 16:52","group_id":"0"}},{"node":{"title":"Great input","content":"\nThank you @Alberto for the kind words and\u00a0valuable advice.\nIf you're ever around again, let us know and we'll gladly show you around :). Will you be there in Brussels for the workshop in September?\n","comment_id":"23910","post_id":"6640","user_id":"8889","parent_comment_id":"23888","creation_date":"Thursday, August 11, 2016 - 15:46","group_id":"0"}},{"node":{"title":"Just a first, liminal reflection...","content":"\nThank you again @Nadia for pointing this out.\n\nI am not sure I fully grasped the purpose of this, as the text is touching on so many issues at once. I will just focus on the questions to the peers.\n\n1. Sustainability can be achieved by any of the mechanisms you mentioned, and more (how about connecting a parallel currency to your activity, creating a membership parallel economy, the likes of Sardex?)... However, the key is that sustainability is not something that can be described in general terms. One has to map the entirety of value chain, and interfaces to surrounding ecosystems, to form an idea of how to become sustainable.\n\n2. Again, much depends on what are the incumbents you are talking about, case by case (2 hospitals will react very differently, because their governance is managed by different individuals... even if the general administration may look the same), and by how much, and what kind of, intersection your activities have with theirs... Identifying a few \"ambassadors\", people that may even be critical but willing to engage and discuss, on both sides (also within your own community) is possibly the first step... verbal communication is easier than written, and maps or other interpretable\/symbolic representations can help confronting the different narratives to converge... I would avoid interfacing two different communities by exchanging long texts first :)\n\n3. In your case I am not sure why you would like to \"work around\" any of this... maybe a specific case could help me focusing on a pragmatic reply. In general demonstrating a solid, well thought-of scheme of access to information, education\/training, mentoring, and peer evaluation, helps convincing that the operations are sensible and aligned with the purposes of the law. However, there are many details one should consider only on a specific plan: what safety nets are needed for you and your community? Can you keep track of activities and consequences? etc...\n\nRegistrations\/certifications\/licensing are in place as fences, one of the tools in the arsenal of safety in healthcare... it is possible to negotiate ways out when it is proven that safety is guaranteed never the less... this may imply lobbying and meetings with authorities, but one can find examples from prior cases that are useful... as instance medical students can practice some medical activities under mentoring before being graduated and licensed... but the University Hospital has a wide safety net set up...\n\nIt's not impossible to find good solutions, and regulators are often discussing of innovation in this field of regulation, but there are no shortcuts...\n\n\u00a0\n","comment_id":"23906","post_id":"6644","user_id":"2424","parent_comment_id":"0","creation_date":"Thursday, August 11, 2016 - 13:43","group_id":"0"}},{"node":{"title":"maybe worth mentioning...","content":"\nAlthough I am personally in favour of leaving behind the \"fences\" of responsibility, and of redesigning the system for accountability and ultimately more pervasive quality... maybe it's time for me to be my own devil's advocate:\nSystems of fences (certification\/licenses\/etc) are not always an innovator's enemy. Dealing with responsibility is a lot easier (and often, paradoxically cheaper in the long run) than dealing with accountability.\nIf your innovation is specialized, small in scale, or incremental (hence fitting well in the ecosystem where the\u00a0incumbents are thriving), maybe it's easier to figure out how to obtain certifications and licenses, than how to establish safety nets and sandboxes to work outside of them (formally,\u00a0but within the purpose of defending your \"users\").\n\nDon't always start from the assumption that, because others complain about the regulations (often as a narrative to raise their prices), they are indeed an obstacle for you. Do your own due diligence, before thinking of how to work beyond (rather than around) them.\n","comment_id":"23908","post_id":"6644","user_id":"2424","parent_comment_id":"0","creation_date":"Thursday, August 11, 2016 - 13:38","group_id":"0"}},{"node":{"title":"Connecting the (food) dots","content":"Hi @Denise Carry, I think it is important to also focus on the important of digestion\/digestability of ingredients (eg. how it changes over age; how it relates with certain foods, the way they are cooked, the environment they are produced\/consumed). This is often forgotten (way too often, I'm afraid), even by most \"food fanatics\" or \"health hypers\", who are looking for trendy or aesthetic standards, while forgetting the basics of what makes food. Taking the European population as an example, pasta and rice is not enough for healthy nutrition. A healthy and resilient diet also needs sorghum, buckwheat and quinoa. Modern food trends praise local food, but citizens also crave for bamboo and manioca leaves next to tomatoes and eggplants. Our urban realities demand apples and oranges and strawberries but also crave for pineapple, lichees and papayas. How connected are we with the production-distribution process of these ingredients? How are they imported? Are they imported with care? How do agricultural and food policies affect health and nutrition?","comment_id":"23893","post_id":"6606","user_id":"8851","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 16:05","group_id":"0"}},{"node":{"title":"The Centrality of Food","content":"There are hundreds of variations of how people relate to food in different cultures of the world. The actual format might vary from culture to culture, however humans have evolved to have their food in the centre of the dining community. This Centrality of Food is physical (eg. dishes in the middle and people sitting all around them), but also has many other connotations. For example, the power of food systems and food supply chains in influencing\/transforming landscapes, economies, territories, habits and human health. In this article, I stipulate this idea on how improving the food system can regenerate an economy in crisis in my country, Greece: http:\/\/bit.ly\/2a8WhLY. On the power of cooking and actually investing personal time in sourcing your food, there is a very nice explanation by Michael Pollan on why it matters: http:\/\/bit.ly\/1alPAAX.","comment_id":"23891","post_id":"6300","user_id":"8851","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 15:43","group_id":"0"}},{"node":{"title":"Thanks for the interesting links","content":"\nhello @dante i went carefully through all your links and was really impressed by all the data and information you found about the different situations in Brussels. I would like to discuss further and share some more insight. Are you around Brussels for the moment?\u00a0\n","comment_id":"23889","post_id":"6633","user_id":"8743","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 14:43","group_id":"0"}},{"node":{"title":"Not clients, partners","content":"\nIn most of Europe schools have no money (I do not know the situation in Flanders). But they make great partners. In Italy, we have a legislation (and, by now, a tradition) of local businesses supporting extracurricular activities in schools. Good school principals build a network of local businesses they work with. So, it could work like this: you involve a school, then \u2013 together with the school principal \u2013 you target local businesses to support the activity.\u00a0\nAnyway, @WinniePoncelet ,\u00a0congrats, that's a great project.\u00a0I live in Brussels, and will keep you guys on the map with a view of looking you up. We visited Gent just a couple of weeks ago with @teirdes \u2013 we would have knocked on your door if we had known you existed!\u00a0\n","comment_id":"23888","post_id":"6640","user_id":"34","parent_comment_id":"23881","creation_date":"Wednesday, August 10, 2016 - 12:58","group_id":"0"}},{"node":{"title":"Hello Rozina,","content":"\nHello Rozina,\nThank you for sharing the story with us. It seems that you have many great ideas about how to improve your local community.\nI have much experiene of the BID structure myself as my home town of Bedford in the UK was one of the first to adopt the structure and my father was the Director of the Board for many years before standing down last year.\nFrom a personal note we found that the local council\/politicians were very happy to engage with and promote the work of the BID, but that it is wise to steer clear of encouraging them to run the projects. Partly this is because it is better being held in the hands of a non-party-alligned group of individuals. The main reason is that most politicians do not want to be seen to be increasing the taxation of local businesses. Because the BID system frequently\u00a0demands that local businesses pay an annual subsidy or charge, if it is administered by the city then it is automatically seen by the citizens as a stealth business tax.\nIt is much better for the BID groups to be politically autonomous and to save the time and energy of local politicians and civil servants. This way you get to use that time and energy on BID directed outcomes, rather than them spending it all in discussion and meetings. It really does help get things moving!\nI wish you all the best for you other initiatives too. Your aims are very laudable.\nAlex\n","comment_id":"23887","post_id":"6642","user_id":"6559","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 12:24","group_id":"0"}},{"node":{"title":"Great to see you made your","content":"Great to see you made your way to Edgeryders @WinniePoncelet and thanks @Alex Levene for bringing me into this loop! I am indeed working with Winnie and a few others on an P2P initiative to let people grow edible insects at home. I saw the project as a slow burner. It is hard to bring the P2P approach to the public and it's a constant experiment to find the right approach to get is going. For me and the others, the project is going down on the priority ladder of all our activities... ","comment_id":"23886","post_id":"6640","user_id":"4942","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 11:37","group_id":"0"}},{"node":{"title":"Morning laugh","content":"Hi Noemi, thanks for that video. The instant sound of kombucha slime landing on that table blasting through my speakers made me laugh out loud during my morning coffee. An example of a workshop is a DNA Cluedo (or Clue?) game where children in group have to solve a murder using biochemical and forensic techniques. We haven't crossed any language borders yet, but hopefully we will in the future :). We're now going to start testing out in what way we can work together with schools. So far it seems like they have very limited means. We will try and make it work regardless, the way you mention might work. Thanks for the tips :)","comment_id":"23881","post_id":"6640","user_id":"8889","parent_comment_id":"23877","creation_date":"Wednesday, August 10, 2016 - 09:11","group_id":"0"}},{"node":{"title":"Thank you Alex. It is funny","content":"Thank you Alex. It is funny how you meet the same people in different places. I'm working together with Merel on a P2P initiative to let people grow edible insects at home, as a form of urban farming and food autonomy. How did you come into contact with him?","comment_id":"23879","post_id":"6640","user_id":"8889","parent_comment_id":"23873","creation_date":"Wednesday, August 10, 2016 - 09:05","group_id":"0"}},{"node":{"title":"Emergence","content":"Hi @Yannick, Hi All. This is great. And resonnates to what I wish to see emerge too. Good to see you are already in touch with various people and groups, good to see overlap. Do you by any chance also connect with POP ? http:\/\/www.potentialofficeproject.org\/wiki\/index.php\/Main_Page I've been writing on these topics, and do not know what to start with, so if its ok, I just feel like sharing a few links, including to online conversations with Eric Hunting Empty Flats Above Shops : https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels\/op-n-m\/N9WWeQ_PF14\/PhQrYg1JBAAJ Nomadic Ecovillages presentation by Eric : https:\/\/docs.google.com\/presentation\/d\/19g_XYezo_jHEZINUqZNZUswZaLsuNHpvbsT3vNkW3eU\/edit#slide=id.p List of construction systems https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels\/op-n-m\/g3nKCOOx68o\/yb58OIvgS8cJ more ressources https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels\/op-n-m\/e0SGcBaZFw8\/d4IzEnf2EgAJ Creating Spaces within Spaces https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels\/op-n-m\/XXsDzujQyoA\/JfIZ5ZpsaxgJ A place potentially inspiring in Brussels ( Camping Town ) https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels\/op-n-m\/lVmY_88ZEvY\/WQFQqLrTlsoJ N55 and Open Manuals https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels\/op-n-m\/HxHyS2lnjjg\/hORC4NGkzV4J Other vacant space convergences in Brussels https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels\/op-n-m\/blUobfTPWik\/DOhSbIrJ_H0J Precare archives ( including \"Contrat Precaire\" ) http:\/\/precare.org\/ Archive of other project drafts : http:\/\/sharewiki.org\/en\/Leipzig_project http:\/\/sharewiki.org\/en\/Spime_Housing and much more https:\/\/groups.google.com\/forum\/#!searchin\/op-n-m\/eric$20hunting$20brussels;context-place=forum\/op-n-m https:\/\/www.diigo.com\/user\/dante-gabryell\/housing ","comment_id":"23878","post_id":"6633","user_id":"366","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 08:55","group_id":"0"}},{"node":{"title":"Partnership with schools?","content":"\nHi @WinniePoncelet and welcome to Edgeryders! I checked your website to see what projects students are experimenting with right now\u00a0but unfortunately I don't speak\u00a0Flemish :-( Can you give us an example? New biodegradable materials are always interesting, I was watching\u00a0this video\u00a0the other day about\u00a0fabric from kombucha, a bacteria I myself tried as\u00a0tea (tastes great btw).\nTo your question, I dont know much about business models but\u00a0I'm wondering if you can finance at least part of the work\u00a0through collaborations with schools where you provide a curricula and a new kind of classroom, and the school covers\u00a0tutors salaries and some materials. Maybe you're doing this already?\u00a0\n","comment_id":"23877","post_id":"6640","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 08:26","group_id":"0"}},{"node":{"title":"A great idea","content":"\nThank you Winnie for sharing this with us.\nThis sounds like a brilliant project, and a great use of resources that would otherwise be wasted.\nI'm not sure that i know the answer to your questions?\nBut perhaps you would like to make contact with @Merel Claes who is also on Edgeryders and works in the Netherlands in\u00a0some of the areas you are investigating.\n","comment_id":"23873","post_id":"6640","user_id":"6559","parent_comment_id":"0","creation_date":"Wednesday, August 10, 2016 - 00:44","group_id":"0"}},{"node":{"title":"No worries. It's all good and formatted.","content":"\nThanks Yannick, looking forward to circulate this story!\n","comment_id":"23849","post_id":"6633","user_id":"32","parent_comment_id":"23847","creation_date":"Monday, August 8, 2016 - 21:31","group_id":"0"}},{"node":{"title":"i don't understand how to put it in the right categorie ","content":"\nsorry @Noemi and @Alberto i think it got in the wrong place again...\n","comment_id":"23847","post_id":"6633","user_id":"8743","parent_comment_id":"0","creation_date":"Monday, August 8, 2016 - 17:43","group_id":"0"}},{"node":{"title":"I would like to start from the bottom...","content":"\n\u200bThank you @Nadia for pointing this out :)\n\nThis is an interesting post, touching on a number of open questions, some receiving partial implicit answers in the same text, others remaining open at all.\n\nI would like to start from the bottom of it. Transforming patients (or their closest carers) into makers is an interesting perspective. We know from citizen science that this first hands involvement often offers a stimulus to personal studies, and reflection about the identity of the problem, and the problem holder. One could argue this is an even more important potential benefit than the access to the devices in itself.\n\nHowever, an important reflection should happen about quality and safety. If one cannot bring a simple solution to the market because of the iters for safety and quality certification, and this we agree is bad, the solution should not be \"ok, let's ignore this step and bypass it\".\nThere are a number of issues here. 1st and foremost, one has to describe how safety and quality are reasonably assured, and what safety net would be put in place should something still happen (although we know they are not perfect, to use an euphemism, today a number of tools and services exist to cover for assistance, accidents' costs, etc on the side of providers).\nOf course, one could ignore this. Depending on the IP scheme, no safety nets would be needed (although it would nice to think of them), for example. But this brings us to a second issue, one that\u00a0is almost\u00a0\"ethical\": transforming every patient in a maker can leverage the citizen-scientist effect only if (this is presented as\u00a0gut feeling here, but I am open to discuss it in depth later)\u00a0the right IP scheme is adopted. And only if radical openness is adopted one can truly claim no responsibility over the final \"accidents\" that will always happen (only that which does not work, will not break).\u00a0Should the creator preserve control of the IP for itself, one will always find a court that will consider the business model \"exploitative\", and enforce the order to establish the aforementioned safety nets (there is an interesting case about a fire happend in an AirBnB apartment that touches on this topic)... falling back to the problem one wanted to work around, just a bit later.\nSo, what would be the general ecosystem' services that would keep this garden grow orderly? I don't see this answered (that's not an easy one,\u00a0indeed)\nResearch, and \"citizen science\", target the pioneers and early adopters... To scale beyond that, we need to think the entire ecosystem, and be humble.\nFor the sake of our understanding, let me be pedant and allow me to stress that\u00a0disabilities do not exist in silos. People have many things going on in their lives, and around them, of course also the disabled ones. They do not stop living when they change status.\u00a0A few will want to pioneer, some will want to have new solutions, some others will not want any because... I am not sure they need a \"because\".\n\nI would like to not dig too deep in the question about why the current \"solutions\" are often not marketed\/offered... just for the sake of reasoning together: if you had a clue about how to build an engine, and it would work once every 100 attempts after serious tinkering... would you be able to market it? Let's be honest with ourselves and remember that researchers are very optimistic people (I belong to the category, so this is self-criticism). They will produce proof of concepts, hardly ever demonstrators (although they usually confuse the terminology), and they don't normally ask themselves questions like \"how long will this work continuously?\", \"what will be the safety mechanism once it turns off, as instance because of battery exhaustion?\", how many scenarios are realistically recapitulated in the lab I used for the tests, and how well does this solution generalize?\",...\nLet's not dive in the argument of healthcare provision on this topic. Sometimes it is the right reflection to face, some other it is populistic... In these circumstances it reminds of the sentence I have recently read on twitter \"being poor means having too much end of the month\"... it may steal a smile, but it's a classic example of ill-posedness. You will not solve poverty by trying to shorten the calendar.\n\n\n\n\n\u00a0\n","comment_id":"23839","post_id":"6603","user_id":"2424","parent_comment_id":"0","creation_date":"Monday, August 8, 2016 - 12:37","group_id":"0"}},{"node":{"title":"I hope Eirini reads this","content":"\nIt just occured to me that @eirinimal could be interested in this piece on resistance to cheap hitech assistive devices. Did your company get to work in the\u00a0medical system per se or are you mostly marketing outside of it?\n","comment_id":"23837","post_id":"6603","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 8, 2016 - 09:07","group_id":"0"}},{"node":{"title":"Making personalized design","content":"\n@Tomma first off: congrats for completing the course work, @Nadia was nice to give me a small update and I'm happy for you guys and hope you'll continue on this road of very thoughtful design!\nFor ever new, exciting and personalized design, did you try talking to commercial furniture designers or the like.. a company that could help take this even forward somehow? Or maybe the team at\u00a0ROC21 can help?\u00a0\n\nThis is a handmade table produced by the roma community living on the outskirts of my hometown, in a rubish dump . The table was purchased by a hip bar downtown (I\u00a0think that at an auction..)\u00a0and is currently under great use. Photo from Made in Pata Rat facebook page. I will see if I can get in touch with someone who can better report on this story.\n","comment_id":"23834","post_id":"6514","user_id":"32","parent_comment_id":"23532","creation_date":"Sunday, August 7, 2016 - 17:17","group_id":"0"}},{"node":{"title":"What has been the response?","content":"\n@Moriel hi! I managed to miss this\u00a0update of yours.. I wouldn't worry about accessibility though, although interesting distinction! Disabled children\u00a0are anyway accompanied all the time, so there would be\u00a0someone who can carry them outside the wheelchair and to the swing.\nI was browsing the Hacking Utopia site and came across your latest work - so you ended up settling with memory foam.\u00a0Did you manage to assemble a prototype for the exhibition? and if so, what was the response?\n\u00a0\n","comment_id":"23833","post_id":"6482","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, August 7, 2016 - 16:28","group_id":"0"}},{"node":{"title":"Embedded the video to see how the cane actually works","content":"\nHi @Moushira, I took the liberty to add it so that it makes for an even better read!\nWhile browsing the web quickly I\u00a0came across several recent articles introducing different robotic canes (including one equipped with a camera invented by a 16 year old), all\u00a0equally cheap to make, that are still\u00a0presented as prototypes. Wondering how come this\u00a0hasn't, many years after, become more widespread..\u00a0\u00a0\n","comment_id":"23832","post_id":"6538","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, August 7, 2016 - 14:56","group_id":"0"}},{"node":{"title":"Can you make it to one of the OPENandChange workshops?","content":"\nWe're building the collective bid for the MacArthur Foundation's 100 million dollar grant with peers in several countries and I think you should be in it\u00a0\u00a0\u00a0 http:\/\/tour.openandchange.care\n","comment_id":"23826","post_id":"5718","user_id":"45","parent_comment_id":"0","creation_date":"Sunday, August 7, 2016 - 11:28","group_id":"4260"}},{"node":{"title":"autonomy ","content":"\nExtreamly interesting case\u00a0Alberto, will make sure to read on it and include it\n","comment_id":"23824","post_id":"6624","user_id":"8496","parent_comment_id":"23821","creation_date":"Saturday, August 6, 2016 - 17:06","group_id":"0"}},{"node":{"title":"Already posted. Now a challenge?","content":"\nI posted that a couple of months\u00a0ago:\u00a0\nhttps:\/\/edgeryders.eu\/en\/opencare-research\/a-challenge-on-autonomy-in-care\nAt the time, I had proposed we roll out a challenge on autonomy and responsibility. Pre-welfare states (19th century), welfare was basically invented by European mutual assistance societies, in turn part of the workers' movement. I imagine that, in the early days, these societies were small enough that the choice of treating someone would visibily drain the common pool of resources. So, in those days, maybe European factory workers thought a bit more like the Amish. A modern-day version of that, though I only know anecdotes about it, is implemented by @lasindias .\u00a0\nI think autonomy\u00a0is also an interesting scenario in terms of policy, and fits well into @Lakomaa 's and @Tino_Sanandaji 's institutional economics framework.\u00a0\nMy summary from the article:\u00a0\n\nThe Amish refuse to have insurance. \"When someone gets sick, the church collects alms to help the patient cover expenses.\"\nThis might happen at a time when the community has other objectives as well (\"setting up a farm for a young couple\"). You can ask of the community to support your treatment, but its\u00a0costs are not simply discharged into an anonymous \"system\": they are borne by your own brothers and sisters. As a result, everyone focuses on not spending more money than is necessary, and\u00a0\"[Amish] communities are highly interested in health education and disease prevention\".\nFor this reason, the Amish use genetic screening of children. Prevention is so important that its benefits trump the disadvantages of dealing with the world at large.\nThey develop their own treatments (one for burns is described in the article). They navigate, with some difficulties, the interface with the mainstream medical world: clinical testing etc. These treatments tend to be very cheap.\u00a0\nCommunities negotiate discounts, which hospitals are willing to offer in exchange for payment in full at the time of service. In one example (a child treated with surgery for colon cancer) price was negotiated down to 19,000 USD from 172,000, a 90% discount. \"For Americans with health insurance, it may come as a surprise that hospital costs are negotiable\".\u00a0\nThe Amish don't sue. \"When the Amish told [a doctor]\u00a0they understand doctors are human and make mistakes, he had to pause to let that sink in. To them, he was not simply a member of the medical establishment, but an autonomous individual doing his best, given the choices and information before him.\"\u00a0\n\n","comment_id":"23821","post_id":"6624","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, August 6, 2016 - 10:24","group_id":"0"}},{"node":{"title":"Not only in the US but also closer to home","content":"\n@lasindias has some recent experience of something similar. I will not go into details, if they feel they want to share they will...\n@Susa and I\u00a0had a chat with Glenn from the Woodbine collective in New York about their own approaches towards building autonomous and resilient communities. And they are especially interesting to me because unlike the Amish, they are in the starting phase. As Glenn described it a subgroup in the Occupy movement decided that they would focus their energy on teaching themselves, and others,\u00a0to become self-reliant communities. They do this through a kind of structured learning program along tracks, when we spoke they were just about to start building the health track. Which reminds me, I need to get back in touch with them!\u00a0\n\u00a0\n","comment_id":"23820","post_id":"6624","user_id":"45","parent_comment_id":"0","creation_date":"Saturday, August 6, 2016 - 08:43","group_id":"0"}},{"node":{"title":"I like most the idea of going where the biggest need is","content":"\nWow,\u00a0they set up surgery camps in the most remote areas. \"All of his equipment fits in just one yellow duffel bag\" - it feels like a dream to be able \/ allowed to do this ad hoc in\u00a0first world countries.\u00a0\n20 years later, their model seems basic yet very advanced, working at scale\u00a0- they've built up a huge network of partnerships,\u00a0residencies, training camps, on-site mentoring, volunteers exchange programs.\nHave you met anyone in Nepal involved in this @Natalia Skoczylas?\n","comment_id":"23807","post_id":"6600","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, August 4, 2016 - 13:16","group_id":"0"}},{"node":{"title":"Love the activist touch to medical care","content":"\nThanks Natalia and Eireann for reporting on this. I had read Marie's story a while ago on the internet and was impressed by the humility with which she had approached medical security. After all, she rightly stated that the benefits of having the pacemaker far\u00a0outweigh the risk - which is why probably many patients are looking away or de-prioritizing this.\nI'm also reminded of @Rune's story where an upgraded\u00a0medical care also needs an alliance between\u00a0patients\/consumers and researchers\u00a0(he's arguing for more\u00a0system availability for\u00a0cheap, effective medical tech).\n","comment_id":"23806","post_id":"6620","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, August 4, 2016 - 12:12","group_id":"0"}},{"node":{"title":"MedDevice FAQs?","content":"\nWow, this is great news indeed. Welcome @Eireann Leverett !\u00a0\nI was at that talk at 32C3. It was a real eye opener. It's all very good and well to make fun of the Internet of Things: my favourite is the Twitter account Internet of Shit (https:\/\/twitter.com\/internetofshit), that churns out a sad\/hilarious\/scary gallery of smart diaphragms, Internet-connected pet feeders that starved your cat to near-death because the server went down (\"It's literally just a timer! WHY does it have to be online? Oh, right, so that they can show me cat food ads\"), and keyboards that predict your next keystroke and leak all your keylogs all over the Net.\u00a0\nBut when you are running that stuff\u00a0inside your body,\u00a0that's where it gets a lot less funny.\u00a0\nI love this idea:\npreparing a consumer training and equipping people who rely on medical devices with knowledge and clear questions they can ask about their own devices.\nA sort of FAQs, of checklist, if I understand correctly.\u00a0Does it make sense to try and prototype this at one of the Open&Change events in the fall?\n\u00a0\n","comment_id":"23804","post_id":"6620","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, August 3, 2016 - 22:31","group_id":"0"}},{"node":{"title":"Video online. Maybe we should make a page with all the projects?","content":"\nMaybe it makes sense to embed the video in this post\n\n\n\n\nwith a\u00a0\nSupport us on Startnext!\n button linking to the fundraising page?\n","comment_id":"23800","post_id":"6510","user_id":"45","parent_comment_id":"23787","creation_date":"Wednesday, August 3, 2016 - 17:12","group_id":"0"}},{"node":{"title":"Collective intelligence as cure for controversy","content":"\nNice to meet you @Denise Carry, I'm Noemi!\nOne of the most schizofrenic thing about medical treatments is, in my opinion, controversial advice. I always tell myself that the moment I will have a real condition I will need to ask for many many opinions in order to be satisfied with recommendations.\u00a0Even with the \"healthy food\" trends which\u00a0you remark, it is becoming harder and harder to find truth or specialists with real credentials. If hospital dieticians are in the wrong, then the only way seems to be more access to information, and\u00a0at some point the more accurate one\u00a0is filtered in.\nI like your approach, and maybe reading about other online communities could be useful to\u00a0your design: for example another edgeryder in Benin is running awareness raising for cardio vascular diseases\u00a0on a massive facebook group, but the reason they manage to keep it relatively uncontroversial, as far as I understood, is that: 1) they don't deal with curative or palliative care,\u00a0only preventative and 2) they have moderators ensuring a healthy and accurate stream of information. This is their story.\nAlso, how can we help?\n","comment_id":"23797","post_id":"6606","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, August 2, 2016 - 17:32","group_id":"0"}},{"node":{"title":"Sure! ","content":"\nI am mostly available. Let's make an appointment on a private channel. Just go here: https:\/\/edgeryders.eu\/en\/user\/34\/contact\u00a0(Edgeryders allows you to email members, while still keeping their email safe.\u00a0\n","comment_id":"23794","post_id":"6532","user_id":"34","parent_comment_id":"23791","creation_date":"Monday, August 1, 2016 - 20:50","group_id":"0"}},{"node":{"title":"Hey Jort, please add me on","content":"\nHey Jort, please add me on skype : notwistgirl\u00a0\nI should be available some time tomorrow, just ping me;)\n","comment_id":"23792","post_id":"6532","user_id":"678","parent_comment_id":"0","creation_date":"Monday, August 1, 2016 - 17:39","group_id":"0"}},{"node":{"title":"Interview","content":"\nHi\u00a0@Alberto and @Natalia Skoczylas,\nWould you be able to participate in an interview any time soon? I'd really love to learn from your experiences and have your input for my dissertation. I'm aiming to graduate at the beginning of september so if you could find some time to help me out soon that would be very much appreciated!\u00a0\nPlease let me know,\u00a0\nJort.\u00a0\n","comment_id":"23791","post_id":"6532","user_id":"8386","parent_comment_id":"0","creation_date":"Monday, August 1, 2016 - 16:52","group_id":"0"}},{"node":{"title":"Something which escaped my mind","content":"\nI am wondering if the\u00a0community would have gotten better if it was organised by the\u00a0groups in question\u00a0instead of the municipality.\nWhen talking about Italianostranieri you mentioned that it was useful as a coordination tool for schools - to help them come together and share knowledge. So they probably got better at teaching the language (not sure if you measured results?)\nBut did it become easier to\u00a0learn\u00a0a language, from the point of view of struggling foreigners? Do you have a story from the other side too, @Franca?\n","comment_id":"23789","post_id":"6602","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 1, 2016 - 11:47","group_id":"0"}},{"node":{"title":"Thanks for the precise clarification.","content":"\nAppreciated! I do hope @tamarafuma and researchers like you Rune can find a more and more powerful voice advocating for more suited tech\u00a0- the arguments you listed in your other post\u00a0seem solid, as well as the solution - [as I understood it]\u00a0if they're too expensive and or\u00a0not provided by hospitals, we have enough of advanced research to\u00a0make them more available ourselves.\n","comment_id":"23788","post_id":"6503","user_id":"32","parent_comment_id":"23738","creation_date":"Monday, August 1, 2016 - 11:38","group_id":"0"}},{"node":{"title":"Just a quick ask: video?","content":"\nHi again! If you guys have the crowdfunding video up online somewhere it would be great to share it!\n","comment_id":"23787","post_id":"6510","user_id":"32","parent_comment_id":"0","creation_date":"Monday, August 1, 2016 - 11:07","group_id":"0"}},{"node":{"title":"I registered","content":"\nI do not think anyone else will come from Edgeryders.\n","comment_id":"23769","post_id":"6041","user_id":"34","parent_comment_id":"23691","creation_date":"Friday, July 29, 2016 - 12:11","group_id":"5954"}},{"node":{"title":"I registered","content":"\nI do not think anyone else will come from Edgeryders.\n","comment_id":"23769","post_id":"6041","user_id":"34","parent_comment_id":"23691","creation_date":"Friday, July 29, 2016 - 12:11","group_id":"5954"}},{"node":{"title":"only for chronic illnes","content":"\nYes, this is indeed a good solution for getting treatement.\n\u00a0But not for surgeries, or patiens coming from all over the country to the main universitary medical center, in the capital of Romania, patiens with special cases who need the most skilled doctors arround them until they have a diagnose.\n\u00a0Actually, the current Minister of health, Vlad, is also coming up with solutions to rebuild the hospitals into viable clean insititutions.\n","comment_id":"23764","post_id":"6604","user_id":"8842","parent_comment_id":"0","creation_date":"Thursday, July 28, 2016 - 14:33","group_id":"0"}},{"node":{"title":"Why not?","content":"\nI can see it being a solution. Setting up someone with an IV is not rocket science; many people can be taught, and then help their neighbors who were not taught.\u00a0Like with defibrillators: the Community First Responders scheme in the UK\u00a0teaches people how to defibrillate each other in 3 days:\u00a0http:\/\/www.communityfirstresponders.org.uk\/\n","comment_id":"23754","post_id":"6604","user_id":"34","parent_comment_id":"23753","creation_date":"Wednesday, July 27, 2016 - 14:36","group_id":"0"}},{"node":{"title":"Oh, yes","content":"\nYes, @Alberto, there were many times when I was just travelling to the hospital to get my IV and then go home. There are also private clinics where people just go and receive the cytostatics.\u00a0Though, for surgeries and patiens from all over the country this is not a solution...\n\u00a0\n","comment_id":"23753","post_id":"6604","user_id":"8842","parent_comment_id":"0","creation_date":"Wednesday, July 27, 2016 - 11:52","group_id":"0"}},{"node":{"title":"Wow","content":"\nThis is a dark, fantastic story @Sabina U . Thank you for sharing.\u00a0\nSo people developed a true phobia of hospitals,\u00a0seen as horrible places, dirty and dangerous.\nMaybe Romanians would be more inclined to reverse the hospital model. For many conditions, you do not really need to be in a hospital all the time. If you are going to have to provide food and clean bedsheets for your ailing family member, you might as well do it at home. This leads to a lightweight system, based on clinics rather than hospitals. Are you aware of any attempts to do this?\n","comment_id":"23752","post_id":"6604","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, July 27, 2016 - 11:39","group_id":"0"}},{"node":{"title":"Brilliant stuff!","content":"\nThis makes a ton of sense. Everyone says that sport and healthy food are good for non-sick people: they should be even more important for people who are sick! I, too, lead\u00a0a reasonably healthy lifestyle. I do not have cancer now, but \u2013 realistically \u2013 I will at some point. And I will want the same kind of advice that you also looked for.\u00a0\nI would totally support this idea! @markomanka , you are a doctor. Any thoughts?\n","comment_id":"23751","post_id":"6606","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, July 27, 2016 - 10:56","group_id":"0"}},{"node":{"title":"Like that","content":"\nGood piece! It seems you are saying that, while pathology might lend themselves to classifications,\u00a0patients are all different (@markomanka always says this). My diabetes is different from yours, because you are not overweight and I am, etc. This calls for small batch solutions rather than cookie-cutter solutions. Makers are efficient at small batch, industry is efficient at cookie-cutter. So, for health care, it should be makers.\u00a0\nIt should not be so difficult to set up something like a voucher system for disabled people. You've got a condition? Here's your voucher, head off to your local makerspace, someone will talk to you. There's a condition, though: you'll need to be an active participant, not a passive consumer. You'll need to help with design, testing, providing feedback. In other words,\u00a0you will need to join a community of makers. Your exact role will depend on your skillset and enthusiasm: the harder you work, the better the outcome solution will fit your particular condition.\u00a0\nRight?\n","comment_id":"23750","post_id":"6603","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, July 27, 2016 - 10:44","group_id":"0"}},{"node":{"title":"Whoa. What about patients associations?  ","content":"\nVery insightful piece, \u00a0thanks Rune. When writing OpenCare we were inspired by the story of a visually impaired person in Milano building his own self standing cane as an everyday support for various tasks requiring both operative hands.\u00a0He did this in a makerspace. @Costantino, are you guys at WeMake seeing collaboration with researchers in similar cases? Or are there events which can aid that?\u00a0\nReading carefully the above, \u00a0there's one thing that strikes me: how come patients associations don't lobby for provision of assisting technology outside the formalised hospital care? Isn't this the kind of thing that they would be best at, being on the *organised* patient and consumer side?\u00a0\n","comment_id":"23741","post_id":"6603","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, July 26, 2016 - 15:48","group_id":"0"}},{"node":{"title":"All components are standard and cheap","content":"\nWhat I don't understand is this: are we looking at a\u00a0personal\u00a0device, maybe wearable, or at one that can be shared? Is it one kit per person or one kit per village, sending SMS alerts to several people? I'm betting one per village \u2013 CO2 levels are probably farily similar across the same village. Dust can be more of a localized\u00a0problem. What do you think, @Costantino ?\n@Michel \u00a0: I think the sensors are shown with no shield in the video because Amiv wants to show how the kit works. This is a prototype, not engineered for mass production.\nIn general, with this kind of project all components are cheap. If it is one kit per village, the easiest would be to buy three of everything, and simply replace a component as it\u00a0breaks down. \u00a0\n","comment_id":"23740","post_id":"6552","user_id":"34","parent_comment_id":"23700","creation_date":"Monday, July 25, 2016 - 17:15","group_id":"0"}},{"node":{"title":"Dropped foot stimulation","content":"\nMany people surviving a stroke or living with multiple sclerosis are having difficulty of walking. Partly because they have lost control of the foot movement. When we walk we automatically lift the toes \u00a0of the ground or we will have a dropped foot (left picture).\n\n\n\u00a0\n\u00a0\n\u00a0\n\u00a0\n\u00a0\n\u00a0\nThe stimulator above is providing a more physiological way to correct this issue (right picture). The device is very simple and once the price was only around 300 euros. Now they have become quite expensive as @Noemi found out ;-)\n\u00a0\n","comment_id":"23738","post_id":"6503","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, July 25, 2016 - 16:08","group_id":"0"}},{"node":{"title":"My apologies. Ingress is the","content":"\nMy apologies. Ingress is the precursor to pokemon go by niantec. It's 'build occult force fields ' instead of 'catch them all'\nWhile built on the same geodata as pmon, The ruleset of ingress requires\/encourages collaborative play to capture the pokegyms \/ portals, and further to create network links between them to control areas.\nSo lower level players are incentivised to assist and build upon the work of others and swarm to a greater extent than I'm seeing yet with pgo.\u00a0\nHaven't played either extensively but that's my impression, and for purposes of design imagination my sympathies\u00a0\n\u00a0\n","comment_id":"23730","post_id":"6541","user_id":"8371","parent_comment_id":"23729","creation_date":"Friday, July 22, 2016 - 19:15","group_id":"5954"}},{"node":{"title":"My apologies. Ingress is the","content":"\nMy apologies. Ingress is the precursor to pokemon go by niantec. It's 'build occult force fields ' instead of 'catch them all'\nWhile built on the same geodata as pmon, The ruleset of ingress requires\/encourages collaborative play to capture the pokegyms \/ portals, and further to create network links between them to control areas.\nSo lower level players are incentivised to assist and build upon the work of others and swarm to a greater extent than I'm seeing yet with pgo.\u00a0\nHaven't played either extensively but that's my impression, and for purposes of design imagination my sympathies\u00a0\n\u00a0\n","comment_id":"23730","post_id":"6541","user_id":"8371","parent_comment_id":"23729","creation_date":"Friday, July 22, 2016 - 19:15","group_id":"5954"}},{"node":{"title":"Clarify that?","content":"\nUh \u2013 sorry @Thom Stewart , I do not understand what you mean...\u00a0\n","comment_id":"23729","post_id":"6541","user_id":"34","parent_comment_id":"23727","creation_date":"Friday, July 22, 2016 - 11:45","group_id":"5954"}},{"node":{"title":"Clarify that?","content":"\nUh \u2013 sorry @Thom Stewart , I do not understand what you mean...\u00a0\n","comment_id":"23729","post_id":"6541","user_id":"34","parent_comment_id":"23727","creation_date":"Friday, July 22, 2016 - 11:45","group_id":"5954"}},{"node":{"title":"This, but also\u00a0","content":"\nThis, but also\u00a0\n(because networks)\nThere's something about the earlier prototype, ingress\u00a0\n","comment_id":"23727","post_id":"6541","user_id":"8371","parent_comment_id":"23724","creation_date":"Friday, July 22, 2016 - 08:44","group_id":"5954"}},{"node":{"title":"This, but also\u00a0","content":"\nThis, but also\u00a0\n(because networks)\nThere's something about the earlier prototype, ingress\u00a0\n","comment_id":"23727","post_id":"6541","user_id":"8371","parent_comment_id":"23724","creation_date":"Friday, July 22, 2016 - 08:44","group_id":"5954"}},{"node":{"title":"Potential of Pokemon Go","content":"\nAlex, you might find useful this post I wrote about Pokemon Go and its possible future applications. It probably doesn't tell you anything you don't know but....\nhttps:\/\/futureviewsblog.wordpress.com\/2016\/07\/20\/gotta-catch-em\/\n","comment_id":"23724","post_id":"6541","user_id":"368","parent_comment_id":"23659","creation_date":"Thursday, July 21, 2016 - 16:57","group_id":"5954"}},{"node":{"title":"Potential of Pokemon Go","content":"\nAlex, you might find useful this post I wrote about Pokemon Go and its possible future applications. It probably doesn't tell you anything you don't know but....\nhttps:\/\/futureviewsblog.wordpress.com\/2016\/07\/20\/gotta-catch-em\/\n","comment_id":"23724","post_id":"6541","user_id":"368","parent_comment_id":"23659","creation_date":"Thursday, July 21, 2016 - 16:57","group_id":"5954"}},{"node":{"title":"It's all about the cost!","content":"\nWhat a great idea!\n\"Toys have great supply chains\", therefore they are cheap, despite not being cheap injection mould stuff anymore, despite having a significant engineering content.\u00a0\nAnd \"you may not have the courage to take a part a 1,000 dollars medical device, but youy definitely have the courage to take apart something that costs 5 dollars.\"\u00a0\nConclusion: for DIY to really work its magic, things have to be cheap. The cheaper the better.\u00a0\n","comment_id":"23719","post_id":"6590","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, July 20, 2016 - 21:16","group_id":"0"}},{"node":{"title":"like the way this discussion is going","content":"\nReally interested in how this could evolve, with my previous collective (www.softrevolution.be)\u00a0we experimented around wellbeing of the elderly in festival context for young people, it was small scaled results, but when we followed it up at the retirment home it had long term results giving those elderly that participated in the festival a higher moral boost.\u00a0\nWe did something likewise at the moviefestival i'm working at where we had groups of troubled youth help design and build an installation, could look back to it how the results went.\u00a0\nMixing the known expirience that i have i'm definitily curious to look at how we could empower people who tend to have extremist behaviours or tendencies through art and culture.\u00a0\n","comment_id":"23706","post_id":"6541","user_id":"8743","parent_comment_id":"23669","creation_date":"Tuesday, July 19, 2016 - 12:55","group_id":"5954"}},{"node":{"title":"like the way this discussion is going","content":"\nReally interested in how this could evolve, with my previous collective (www.softrevolution.be)\u00a0we experimented around wellbeing of the elderly in festival context for young people, it was small scaled results, but when we followed it up at the retirment home it had long term results giving those elderly that participated in the festival a higher moral boost.\u00a0\nWe did something likewise at the moviefestival i'm working at where we had groups of troubled youth help design and build an installation, could look back to it how the results went.\u00a0\nMixing the known expirience that i have i'm definitily curious to look at how we could empower people who tend to have extremist behaviours or tendencies through art and culture.\u00a0\n","comment_id":"23706","post_id":"6541","user_id":"8743","parent_comment_id":"23669","creation_date":"Tuesday, July 19, 2016 - 12:55","group_id":"5954"}},{"node":{"title":"I'm impressed. ","content":"\nHi @Constantino,\nIt's looking great, this kid is a genius. Thank you for sharing this. It's really a huge step assistance for asthmatic people. I think that sms message will be the most popular reminder...\nWhile I'm just \u00a0worried and curious about the way to store it safely maybe in a box ?! Some of those sensors don't need to be covered isn't it ?\u00a0\nIf any part of the peace is broken or need any maintenance like \"over heating\", is not easy to fix and to find a new one here in Madagascar.\u00a0\n","comment_id":"23700","post_id":"6552","user_id":"8857","parent_comment_id":"23693","creation_date":"Tuesday, July 19, 2016 - 09:17","group_id":"0"}},{"node":{"title":"nice to meet you and check this out :)","content":"\nHi Michel,\nthanks for sharing.\u00a0\nWhile I'm\u00a0looking for other possible solutions and\u00a0experiences in the \"maker\" realm, please take a look at this project:\u00a0\nArnav studied the causes and effects of asthma and came up with the AsthmaPi which uses a\u00a0Raspberry Pi, a Sense Hat, an MQ-135 Gas Sensor, a Sharp Optical Dust Sensor and an Arduino Uno. It is programmed in Python and C++\u00a0and\u00a0triggers\u00a0email and SMS text message alerts to take medication and remind patients to go\u00a0for review visits. There is also an accompanying booklet which describes the condition and how to treat it. The sensors on the SenseHAT are used to measure temperature and humidity and the MQ gas sensor detects smoke, nitrogen compounds and host of other airborne triggers.\n\n\n\n\nhttp:\/\/www.tech4goodawards.com\/finalist\/arnav-sharma\/\n@Michel What do you think?\nciao :)\n\u00a0\n","comment_id":"23693","post_id":"6552","user_id":"2604","parent_comment_id":"0","creation_date":"Monday, July 18, 2016 - 14:59","group_id":"0"}},{"node":{"title":"Getting prepared for HH Bordeaux in October","content":"\nSorry for updating this post only now. I have fresh info from the organizers. @Costantino and @markomanka and @Alberto and @Lakomaa and @Rossana Torri please forward to anyone who is interested.\nWe need to register to the event. The prices make it clear you need to register *early*, I mean now. Click the \"Je m'inscris\" link.\n\nWe are scheduled for a 30 min talk on Friday Oct 21st. Who's in to give the talk?\nSome challenges already have been published. \u00a0Go take a look. (You may need to create an account to access the challenges.)\n\nUBx might propose a challenge around mining discussion and networking (surprise, surprise, ...). Who's in to propose another challenge? WeMake?\n","comment_id":"23691","post_id":"6041","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, July 18, 2016 - 13:41","group_id":"5954"}},{"node":{"title":"Getting prepared for HH Bordeaux in October","content":"\nSorry for updating this post only now. I have fresh info from the organizers. @Costantino and @markomanka and @Alberto and @Lakomaa and @Rossana Torri please forward to anyone who is interested.\nWe need to register to the event. The prices make it clear you need to register *early*, I mean now. Click the \"Je m'inscris\" link.\n\nWe are scheduled for a 30 min talk on Friday Oct 21st. Who's in to give the talk?\nSome challenges already have been published. \u00a0Go take a look. (You may need to create an account to access the challenges.)\n\nUBx might propose a challenge around mining discussion and networking (surprise, surprise, ...). Who's in to propose another challenge? WeMake?\n","comment_id":"23691","post_id":"6041","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, July 18, 2016 - 13:41","group_id":"5954"}},{"node":{"title":"Adding this to the OpenCare community group","content":"\nit contains community insight on the interface between care and the arts.\u00a0\n","comment_id":"23685","post_id":"6541","user_id":"34","parent_comment_id":"0","creation_date":"Monday, July 18, 2016 - 11:05","group_id":"5954"}},{"node":{"title":"Adding this to the OpenCare community group","content":"\nit contains community insight on the interface between care and the arts.\u00a0\n","comment_id":"23685","post_id":"6541","user_id":"34","parent_comment_id":"0","creation_date":"Monday, July 18, 2016 - 11:05","group_id":"5954"}},{"node":{"title":"Crazy ideas the best","content":"\nOK, interesting. Young men are an important focus in general, I think. They\u00a0have comparatively higher tendencies to addiction, aggression to self and others,\u00a0and ideological narrowness. What do you think is the potential of transfering your idea to other communities of young men (i.e. not working\u00a0in tech\/online communities)? I'm thinking about those likely to be vulnerable to\u00a0extremist ideologies, or drugs, or other obsessions\u00a0that strip away capacity and agency.\u00a0\u00a0\u00a0\n","comment_id":"23669","post_id":"6541","user_id":"368","parent_comment_id":"23659","creation_date":"Saturday, July 16, 2016 - 17:39","group_id":"5954"}},{"node":{"title":"Crazy ideas the best","content":"\nOK, interesting. Young men are an important focus in general, I think. They\u00a0have comparatively higher tendencies to addiction, aggression to self and others,\u00a0and ideological narrowness. What do you think is the potential of transfering your idea to other communities of young men (i.e. not working\u00a0in tech\/online communities)? I'm thinking about those likely to be vulnerable to\u00a0extremist ideologies, or drugs, or other obsessions\u00a0that strip away capacity and agency.\u00a0\u00a0\u00a0\n","comment_id":"23669","post_id":"6541","user_id":"368","parent_comment_id":"23659","creation_date":"Saturday, July 16, 2016 - 17:39","group_id":"5954"}},{"node":{"title":"I stand corrected","content":"\nOf course you did. Sorry about that. :-)\n","comment_id":"23668","post_id":"6541","user_id":"34","parent_comment_id":"23664","creation_date":"Saturday, July 16, 2016 - 12:04","group_id":"5954"}},{"node":{"title":"I stand corrected","content":"\nOf course you did. Sorry about that. :-)\n","comment_id":"23668","post_id":"6541","user_id":"34","parent_comment_id":"23664","creation_date":"Saturday, July 16, 2016 - 12:04","group_id":"5954"}},{"node":{"title":"Hang in there!","content":"\nHang in there,\u00a0@Michel . Hopefully some of our more skilled community members can get in touch with you.\u00a0\n","comment_id":"23665","post_id":"6552","user_id":"34","parent_comment_id":"23655","creation_date":"Saturday, July 16, 2016 - 11:29","group_id":"0"}},{"node":{"title":"(I did that.) ","content":"\nhttps:\/\/edgeryders.eu\/en\/arrivals\/a-belated-hello\n","comment_id":"23664","post_id":"6541","user_id":"8574","parent_comment_id":"23662","creation_date":"Saturday, July 16, 2016 - 00:21","group_id":"5954"}},{"node":{"title":"(I did that.) ","content":"\nhttps:\/\/edgeryders.eu\/en\/arrivals\/a-belated-hello\n","comment_id":"23664","post_id":"6541","user_id":"8574","parent_comment_id":"23662","creation_date":"Saturday, July 16, 2016 - 00:21","group_id":"5954"}},{"node":{"title":"Maybe talk to our Egyptian friends?","content":"\nSince the MENA region is the focus of this call, you could reach out to @Hazem and @amiridina and @Uli and @Hegazy ... maybe a brainstorm would be generative? And of course you are welcome to use Edgeryders as an applicant UK organisation.\u00a0\n","comment_id":"23663","post_id":"6541","user_id":"34","parent_comment_id":"23653","creation_date":"Saturday, July 16, 2016 - 00:10","group_id":"5954"}},{"node":{"title":"Maybe talk to our Egyptian friends?","content":"\nSince the MENA region is the focus of this call, you could reach out to @Hazem and @amiridina and @Uli and @Hegazy ... maybe a brainstorm would be generative? And of course you are welcome to use Edgeryders as an applicant UK organisation.\u00a0\n","comment_id":"23663","post_id":"6541","user_id":"34","parent_comment_id":"23653","creation_date":"Saturday, July 16, 2016 - 00:10","group_id":"5954"}},{"node":{"title":"Good point","content":"\n@brady I am personally a fan of \"analog\" location based. Your point reminds me a bit of the Walking Ethnographies in the alcyon days of unMonastery Matera. But hey, this is just me cheering you guys on from the sidelines, this will be whatever Alex and the team that assembles behind it (hopefully including you too) make it to be. The Edgeryders mantra is \"who does the work calls the shots\". :-)\nBy the way: welcome! Any friend of @johncoate is our friend. If you get the time and inspiration for it, it would be nice for you to present yourself in the Arrivals group.\u00a0\n","comment_id":"23662","post_id":"6541","user_id":"34","parent_comment_id":"23661","creation_date":"Saturday, July 16, 2016 - 00:06","group_id":"5954"}},{"node":{"title":"Good point","content":"\n@brady I am personally a fan of \"analog\" location based. Your point reminds me a bit of the Walking Ethnographies in the alcyon days of unMonastery Matera. But hey, this is just me cheering you guys on from the sidelines, this will be whatever Alex and the team that assembles behind it (hopefully including you too) make it to be. The Edgeryders mantra is \"who does the work calls the shots\". :-)\nBy the way: welcome! Any friend of @johncoate is our friend. If you get the time and inspiration for it, it would be nice for you to present yourself in the Arrivals group.\u00a0\n","comment_id":"23662","post_id":"6541","user_id":"34","parent_comment_id":"23661","creation_date":"Saturday, July 16, 2016 - 00:06","group_id":"5954"}},{"node":{"title":"Hooray for early stages crazy ideas","content":"\nHi, Alex, et al,\nI'm not in Europe, so have little to offer there, but I am also in the (very) early stages of an arts\/culture\/therapy\/social justice project here in the San Francisco Bay area, so am interested in listening in, offering my own experience, etc. I teach theatre (along with running The WELL-- I'm here because John Coate told me about Edgeryders-- and follow a lot of people around the world doing cool stuff with arts + healing.\nAs a related aside, my spouse is a local historian working on neighborhood levels and has been working on archiving (& making publicly available)\u00a0 an enormous photo collection, and is looking at ways to share that as a way of doing enhanced map-based walking tours, etc. (The old photos and crowd-sourced info about them could show up while you were exploring a neighborhood-- there are some things like this already, like historypin.) Not as fancy schmancy as the Pokemon Go technology, but a way to be location-based.\nIt also makes me think a bit of Nonny de la Pe\u00f1a's work with immersive journalism. http:\/\/www.immersivejournalism.com\/\nHappy to sneak into the loop if any calls are happening.\n","comment_id":"23661","post_id":"6541","user_id":"8574","parent_comment_id":"23659","creation_date":"Friday, July 15, 2016 - 21:32","group_id":"5954"}},{"node":{"title":"Hooray for early stages crazy ideas","content":"\nHi, Alex, et al,\nI'm not in Europe, so have little to offer there, but I am also in the (very) early stages of an arts\/culture\/therapy\/social justice project here in the San Francisco Bay area, so am interested in listening in, offering my own experience, etc. I teach theatre (along with running The WELL-- I'm here because John Coate told me about Edgeryders-- and follow a lot of people around the world doing cool stuff with arts + healing.\nAs a related aside, my spouse is a local historian working on neighborhood levels and has been working on archiving (& making publicly available)\u00a0 an enormous photo collection, and is looking at ways to share that as a way of doing enhanced map-based walking tours, etc. (The old photos and crowd-sourced info about them could show up while you were exploring a neighborhood-- there are some things like this already, like historypin.) Not as fancy schmancy as the Pokemon Go technology, but a way to be location-based.\nIt also makes me think a bit of Nonny de la Pe\u00f1a's work with immersive journalism. http:\/\/www.immersivejournalism.com\/\nHappy to sneak into the loop if any calls are happening.\n","comment_id":"23661","post_id":"6541","user_id":"8574","parent_comment_id":"23659","creation_date":"Friday, July 15, 2016 - 21:32","group_id":"5954"}},{"node":{"title":"Agree","content":"\nI think you're right about the universe wanting this to all happen.\nWell done for all your hard work with Galway. Looking forward to getting even more stuck in with the Culture Team in the next few weeks.\n","comment_id":"23660","post_id":"6541","user_id":"6559","parent_comment_id":"23645","creation_date":"Friday, July 15, 2016 - 21:01","group_id":"5954"}},{"node":{"title":"Agree","content":"\nI think you're right about the universe wanting this to all happen.\nWell done for all your hard work with Galway. Looking forward to getting even more stuck in with the Culture Team in the next few weeks.\n","comment_id":"23660","post_id":"6541","user_id":"6559","parent_comment_id":"23645","creation_date":"Friday, July 15, 2016 - 21:01","group_id":"5954"}},{"node":{"title":"I wonder","content":"\nHi Bridget,\nThanks for your insight. Having someone who has engaged with the funded before would be really helpful when i comes to opening a dialogue with the organisation. I really appreciate the thoughts you've shared here.\nI think right now that the strength of the work i'd want to develop would be around the social\/cultural therapy end. I have an early stages crazy idea that i'd like to use a platform like Edgeryders to encourage engagement and story sharing from people working in the tech\/online communities (often, but not exclusively, young socially disengaged men with a disproportiately high risk of mental health disorder and often lacking in social support networks). My idea is currently that these stories, poems and thoughts could then be collated and presented through an number of ways, but my favourite (right now) would be to create an app that uses the same technology as the Pokemon Go system. Allowing these poems or stories to be placed into a real landscape (perhaps one that the writer identifies strongly with). People can then download the apps for free and engage with the works outside. Encouraging people to share, to go outside and see their words, but also to see others engaging positively with difficult truths in an anonymous way.\nAs an idea\/project, it's right at the egde of my abilities but i think it might have enough edges of interest that might draw in other ER people if we can find a way of funding their work to develop the tech\/care sides.\nSuper early days right now, but i think there's a bare bones idea in there somewhere that has real value.\n","comment_id":"23659","post_id":"6541","user_id":"6559","parent_comment_id":"23644","creation_date":"Friday, July 15, 2016 - 20:57","group_id":"5954"}},{"node":{"title":"I wonder","content":"\nHi Bridget,\nThanks for your insight. Having someone who has engaged with the funded before would be really helpful when i comes to opening a dialogue with the organisation. I really appreciate the thoughts you've shared here.\nI think right now that the strength of the work i'd want to develop would be around the social\/cultural therapy end. I have an early stages crazy idea that i'd like to use a platform like Edgeryders to encourage engagement and story sharing from people working in the tech\/online communities (often, but not exclusively, young socially disengaged men with a disproportiately high risk of mental health disorder and often lacking in social support networks). My idea is currently that these stories, poems and thoughts could then be collated and presented through an number of ways, but my favourite (right now) would be to create an app that uses the same technology as the Pokemon Go system. Allowing these poems or stories to be placed into a real landscape (perhaps one that the writer identifies strongly with). People can then download the apps for free and engage with the works outside. Encouraging people to share, to go outside and see their words, but also to see others engaging positively with difficult truths in an anonymous way.\nAs an idea\/project, it's right at the egde of my abilities but i think it might have enough edges of interest that might draw in other ER people if we can find a way of funding their work to develop the tech\/care sides.\nSuper early days right now, but i think there's a bare bones idea in there somewhere that has real value.\n","comment_id":"23659","post_id":"6541","user_id":"6559","parent_comment_id":"23644","creation_date":"Friday, July 15, 2016 - 20:57","group_id":"5954"}},{"node":{"title":"Amazing","content":"\nFirstly, huge congratulations for the success. I hope you are celebrating tonight.\nI won't expect a replay til later in the weekend whilst you recover from the celebrations, but i'd be really keen to touch base with you in the next few days about what you are going to do next and how i might be able to graft some of my ideas around that.\n","comment_id":"23658","post_id":"6541","user_id":"6559","parent_comment_id":"23642","creation_date":"Friday, July 15, 2016 - 20:41","group_id":"5954"}},{"node":{"title":"Amazing","content":"\nFirstly, huge congratulations for the success. I hope you are celebrating tonight.\nI won't expect a replay til later in the weekend whilst you recover from the celebrations, but i'd be really keen to touch base with you in the next few days about what you are going to do next and how i might be able to graft some of my ideas around that.\n","comment_id":"23658","post_id":"6541","user_id":"6559","parent_comment_id":"23642","creation_date":"Friday, July 15, 2016 - 20:41","group_id":"5954"}},{"node":{"title":"Many things  are possible with some people. ","content":"\nHi @Noemi, nice to hear from you again. I already meet up @Tiago here in Madagascar, \u00a0I'm sure he knows enough how things going here.\nI didn't start yet with education for all because I don't have enough tools and I need to develop something that reattached on it, like who are the target as adults ,youth and childrens who are related to different services such as solar canteen, class room, school supplies, personnel and budget for this.\u00a0\nAbout @Alberto questions, I don't know if there is any community for that. I can start with some people who are interested and make one.\u00a0\n","comment_id":"23655","post_id":"6552","user_id":"8857","parent_comment_id":"23634","creation_date":"Friday, July 15, 2016 - 16:47","group_id":"0"}},{"node":{"title":"Great, and as I just got","content":"\nGreat, and as I just got fired from my other work, I have time to help much more. If you could share with us the document you have created we can all have a peek and start collaborating. If I have some good ideas for funding, will let you know as well - this might be suitable for example\u00a0\nhttp:\/\/on-the-move.org\/news\/article\/17919\/british-council-cultural-protection-fund-2016-2020\/\n","comment_id":"23653","post_id":"6541","user_id":"678","parent_comment_id":"0","creation_date":"Friday, July 15, 2016 - 16:27","group_id":"5954"}},{"node":{"title":"Great, and as I just got","content":"\nGreat, and as I just got fired from my other work, I have time to help much more. If you could share with us the document you have created we can all have a peek and start collaborating. If I have some good ideas for funding, will let you know as well - this might be suitable for example\u00a0\nhttp:\/\/on-the-move.org\/news\/article\/17919\/british-council-cultural-protection-fund-2016-2020\/\n","comment_id":"23653","post_id":"6541","user_id":"678","parent_comment_id":"0","creation_date":"Friday, July 15, 2016 - 16:27","group_id":"5954"}},{"node":{"title":"Getting stronger","content":"\nGreat! This is getting stronger and stronger. Also, now that Galway won the title of ECOC 2020, it becomes a natural point to anchor some of these activities, in, via @Thom Stewart and his group. I expect the ramp up to 2020 will be slow, despite best intentions, because the city will first need to build a delivery structure and that will take months, if not a full year. So, best to look elsewhere (like WellCome) for seed grants, involving the Galwegian contingent from the get-go.\u00a0\nAlso: @Nadia will soon be announcing another pretty awesome (if totally crazy) opportunity: a decentralized bid to 100 and change, a competition that awards 100\u00a0million\u00a0dollars to a group with a credible take on solving some big problem. \"Decentralized\" means that we will be proposing a smart swarm of initiatives around the central concept of community driven care. Both Galway and Flow (Bridget's company) could be part of that. Nadia and Noemi are putting the finishing touches\u00a0to the process, which needs to be robust to accommodate many people and orgs.\u00a0\n","comment_id":"23652","post_id":"6541","user_id":"34","parent_comment_id":"23651","creation_date":"Friday, July 15, 2016 - 16:19","group_id":"5954"}},{"node":{"title":"Getting stronger","content":"\nGreat! This is getting stronger and stronger. Also, now that Galway won the title of ECOC 2020, it becomes a natural point to anchor some of these activities, in, via @Thom Stewart and his group. I expect the ramp up to 2020 will be slow, despite best intentions, because the city will first need to build a delivery structure and that will take months, if not a full year. So, best to look elsewhere (like WellCome) for seed grants, involving the Galwegian contingent from the get-go.\u00a0\nAlso: @Nadia will soon be announcing another pretty awesome (if totally crazy) opportunity: a decentralized bid to 100 and change, a competition that awards 100\u00a0million\u00a0dollars to a group with a credible take on solving some big problem. \"Decentralized\" means that we will be proposing a smart swarm of initiatives around the central concept of community driven care. Both Galway and Flow (Bridget's company) could be part of that. Nadia and Noemi are putting the finishing touches\u00a0to the process, which needs to be robust to accommodate many people and orgs.\u00a0\n","comment_id":"23652","post_id":"6541","user_id":"34","parent_comment_id":"23651","creation_date":"Friday, July 15, 2016 - 16:19","group_id":"5954"}},{"node":{"title":"Yes","content":"\n...I could be. We could help with the 'story of change' for an application, and audience outreach and\u00a0evaluation elements. And as you know I'm interested in thrivability, which is basically about seeing mental health in a very holistic way including\u00a0environmental and physical, social and\u00a0cultural dimensions.\u00a0\n","comment_id":"23651","post_id":"6541","user_id":"368","parent_comment_id":"23647","creation_date":"Friday, July 15, 2016 - 16:11","group_id":"5954"}},{"node":{"title":"Yes","content":"\n...I could be. We could help with the 'story of change' for an application, and audience outreach and\u00a0evaluation elements. And as you know I'm interested in thrivability, which is basically about seeing mental health in a very holistic way including\u00a0environmental and physical, social and\u00a0cultural dimensions.\u00a0\n","comment_id":"23651","post_id":"6541","user_id":"368","parent_comment_id":"23647","creation_date":"Friday, July 15, 2016 - 16:11","group_id":"5954"}},{"node":{"title":"Interested?","content":"\n@Bridget McKenzie are you saying you are interested in working with us on this? @Alex Levene : I can vouch for Bridget. She participated in the original Edgeryders exercise, and she impressed us all with her smarts and compassion.\u00a0\n","comment_id":"23647","post_id":"6541","user_id":"34","parent_comment_id":"23644","creation_date":"Friday, July 15, 2016 - 14:56","group_id":"5954"}},{"node":{"title":"Interested?","content":"\n@Bridget McKenzie are you saying you are interested in working with us on this? @Alex Levene : I can vouch for Bridget. She participated in the original Edgeryders exercise, and she impressed us all with her smarts and compassion.\u00a0\n","comment_id":"23647","post_id":"6541","user_id":"34","parent_comment_id":"23644","creation_date":"Friday, July 15, 2016 - 14:56","group_id":"5954"}},{"node":{"title":"Thanks so much for the insight.","content":"\nOk, good to know..\nI was browsing some formerly funded projects and for example in this call for Collaborative Awards in Humanities and Social Sciences\u00a0it appears that they do fund community inquiries. Of course, we need to scan the calls thoroughly.\n@Alex Levene I can think of a few more edgeryders whom we can invite to be part of this, the only thing is we need to do the groundwork ourselves. On the fabulousness side, the universe is bent\u00a0on us making a leap with our culture\u00a0team.. THIS.\u00a0#win #Galway 2020!\u00a0\n\u00a0\n","comment_id":"23645","post_id":"6541","user_id":"32","parent_comment_id":"23644","creation_date":"Friday, July 15, 2016 - 14:46","group_id":"5954"}},{"node":{"title":"Thanks so much for the insight.","content":"\nOk, good to know..\nI was browsing some formerly funded projects and for example in this call for Collaborative Awards in Humanities and Social Sciences\u00a0it appears that they do fund community inquiries. Of course, we need to scan the calls thoroughly.\n@Alex Levene I can think of a few more edgeryders whom we can invite to be part of this, the only thing is we need to do the groundwork ourselves. On the fabulousness side, the universe is bent\u00a0on us making a leap with our culture\u00a0team.. THIS.\u00a0#win #Galway 2020!\u00a0\n\u00a0\n","comment_id":"23645","post_id":"6541","user_id":"32","parent_comment_id":"23644","creation_date":"Friday, July 15, 2016 - 14:46","group_id":"5954"}},{"node":{"title":"Good thinking","content":"\nI've done quite a lot of work on Wellcome funded sci-arts projects, or directly for the Wellcome Trust. A couple of thoughts about what would work with them. They would want to see collaboration with scientists\/academics\u00a0to explore new\/innovative areas of connection. If it engages with practitioners in mental health\/arts therapy, there would need to be a strong theoretical and experimental element. In terms of what they support, they veer\u00a0more to the neuroscience & pharma end of (mental) health research, than the social\/cultural therapeutic end. If OpenCare is seen as challenging Big Pharma, it might be a little anathema to Wellcome. But I don't know, it's worth exploring.\n","comment_id":"23644","post_id":"6541","user_id":"368","parent_comment_id":"0","creation_date":"Friday, July 15, 2016 - 12:57","group_id":"5954"}},{"node":{"title":"Good thinking","content":"\nI've done quite a lot of work on Wellcome funded sci-arts projects, or directly for the Wellcome Trust. A couple of thoughts about what would work with them. They would want to see collaboration with scientists\/academics\u00a0to explore new\/innovative areas of connection. If it engages with practitioners in mental health\/arts therapy, there would need to be a strong theoretical and experimental element. In terms of what they support, they veer\u00a0more to the neuroscience & pharma end of (mental) health research, than the social\/cultural therapeutic end. If OpenCare is seen as challenging Big Pharma, it might be a little anathema to Wellcome. But I don't know, it's worth exploring.\n","comment_id":"23644","post_id":"6541","user_id":"368","parent_comment_id":"0","creation_date":"Friday, July 15, 2016 - 12:57","group_id":"5954"}},{"node":{"title":"Super-interested whichever","content":"\nSuper-interested whichever way 30 minutes time goes....\u00a0\n","comment_id":"23642","post_id":"6541","user_id":"8371","parent_comment_id":"0","creation_date":"Friday, July 15, 2016 - 12:32","group_id":"5954"}},{"node":{"title":"Super-interested whichever","content":"\nSuper-interested whichever way 30 minutes time goes....\u00a0\n","comment_id":"23642","post_id":"6541","user_id":"8371","parent_comment_id":"0","creation_date":"Friday, July 15, 2016 - 12:32","group_id":"5954"}},{"node":{"title":"That's right, not counting on medical healthcare","content":"\n..hi @Michel, glad to see you managed to post! I think what @Alberto is asking is if communities, or if people like you\u00a0can take care of this faster or in a different way than doctors - because, like you say, this problem is out of their hand and it's not a priority for the system.\nHave\u00a0you already started with your solution of education for all? Can we help?\u00a0By the way, another edgeryder here @Tiago also thinks that we need to make alternative information available for many more\u00a0people. His work with solar kiosks (also in Madagascar!) is here if you don't know each other already.\u00a0\u00a0\nAlso, Jean Paul @jdossou80@yahoo.com is running an information spreading group to learn how to prevent\u00a0heart disease\u00a0in Benin - they are using facebook for this. I found it inspiring..\u00a0\n\u00a0\n","comment_id":"23634","post_id":"6552","user_id":"32","parent_comment_id":"23627","creation_date":"Friday, July 15, 2016 - 10:10","group_id":"0"}},{"node":{"title":"Hey @Tomma - I'm really glad","content":"\nHey @Tomma - I'm really glad to see such a constructive idea being realized in Berlin. It's absolutely essential for a myriad of reasons. I was also wondering lately if you thought of taking similar activity one step further and creating sort of economy inside the temporary shelters\/housing - so that the produce of the inhabitants could be sold outside, either as affordable fixes for the houses, or maybe as crafts, if higher quality materials were provided?\u00a0\n","comment_id":"23630","post_id":"6514","user_id":"678","parent_comment_id":"0","creation_date":"Friday, July 15, 2016 - 08:27","group_id":"0"}},{"node":{"title":"Actuality and prioritize ","content":"\nHey @Alberto! Actually Malagasy government on something else. Since ever,the health department is on a vitamin A and mosquito net campaign, \u00a0vaccination against poliomelite \"weaknesses of ligaments\" every year. And there is no update since 2006, The Malagasy Institute of statistics on deep water. Just for record, a doctor is caring a thousand people so 1\/1000 people, we are estimated about 20 000 000 habitant.\nHere is a picture of a doctor make you know how it's look like on administration building for public health.\n\n\u00a0It's happening they pay from there own money to get gloves.\u00a0\n","comment_id":"23627","post_id":"6552","user_id":"8857","parent_comment_id":"23626","creation_date":"Thursday, July 14, 2016 - 17:54","group_id":"0"}},{"node":{"title":"Can asthma treatment be open?","content":"\nHello @Michel , thanks for this great story (and thanks for taking the time of writing in English, unfortunately most people in Edgeryders do not speak or read\u00a0Malagasy). Wow, I had no idea asthma was that common in your part of the world.\u00a0\nI am wondering if asthma treatment would lend itself to cheap, open source, DIY treatment.\n\nit is a chronic condition \u2013 plenty of time for the patient to learn to manage it\nit is treated with well-understood drugs\u00a0\nwhich are delivered with relatively simple machines (inhalers)\nlifestyle and environmental modificiations also affect it \u2013 as Michel says, defend the forest, asthma management gets better for everyone living near it.\n\nThis sounds like something communities could try to crack.\u00a0Does this make sense, @markomanka and @Costantino ? Would this be a possible area to work in?\n","comment_id":"23626","post_id":"6552","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, July 14, 2016 - 12:43","group_id":"0"}},{"node":{"title":"Indeed a great story!","content":"\n\"A human project, rather than a corporate one.\" Herein might lie one of they keys to open care. @Ezio Manzini might have something to say here...\n","comment_id":"23625","post_id":"6547","user_id":"34","parent_comment_id":"23619","creation_date":"Thursday, July 14, 2016 - 12:31","group_id":"0"}},{"node":{"title":"Related Pictures ","content":"\nSorry for some indecent pictures.\u00a0\n","comment_id":"23620","post_id":"6552","user_id":"8857","parent_comment_id":"0","creation_date":"Wednesday, July 13, 2016 - 20:28","group_id":"0"}},{"node":{"title":"Here is the scoop, from what I read...","content":"\nThe initiative was taken over from the founder and a\u00a0few volunteers from the Grey Dhaka group who took it on a pro bono project. Then teamed up with Grammen Intel to help teach the community to make them. Treating it as a human project rather than a copyright corporate idea. @andra @Alex Levene @Noemi\n","comment_id":"23619","post_id":"6547","user_id":"8708","parent_comment_id":"0","creation_date":"Wednesday, July 13, 2016 - 18:46","group_id":"0"}},{"node":{"title":"Are the young agriculturers from two yrs ago still up& running?","content":"\nThanks for sharing your short doc @Pavlos.. it does feel hopeful, looking at the young people taking on activities\u00a0that traditionally were assigned to older, more rural populations, and mostly to see them taking on\u00a0brand new skillsets. Where I come from (Romania) these small islands of change exist as well, but young farmers can't cater but for tiny markets. For the more traditional producers,\u00a0we're talking subsistence agriculture and farming.\u00a0With such small subsidies (someone in the video mentions 1500 eurs per year), how did they eventually manage? Notice I'm asking this two years after the movie was made.\u00a0\n","comment_id":"23618","post_id":"6515","user_id":"32","parent_comment_id":"23497","creation_date":"Wednesday, July 13, 2016 - 17:03","group_id":"0"}},{"node":{"title":"Well done!","content":"\nHello! I really like the fact that people are getting involved into this kind of initiative, especially because of the diversity (of people) promoted. I encourage you to ask for as more and diverse feedback as possible and try to engage as many different types of people as you can (different cultures, mentalities, needs when it comes to cooking etc.). I\u2019m sure they would like to help you out with this, as it\u2019s their interest too. Also, I think the way you test the land, step by step, may be very helpful. Are you planning to do any other initiative like the cooking with the minimal utensils one? Or to do it again, but involving other groups of people? Have you got any new conclusion based on this activity? Let me know, I\u2019m curious.\u00a0\n","comment_id":"23616","post_id":"6453","user_id":"8856","parent_comment_id":"0","creation_date":"Wednesday, July 13, 2016 - 11:16","group_id":"0"}},{"node":{"title":"Interesting and not that hard to hit target","content":"\nHi! I really like your idea and I think it can work out very well.\nFrom what you presented and how funny it seems, I think people can easily take it as an adventure call and that\u2019s nice. But I think you should pay attention so that the purpose of your project is understood: the fact that it\u2019s referring to refugees groups. For example, is the app going to be in German? Or what other languages? Refugees might have difficulties learning German (and not only refugees, newcomers too)\u2026 How is the project evolving, by the way? :D\n","comment_id":"23615","post_id":"6501","user_id":"8856","parent_comment_id":"0","creation_date":"Wednesday, July 13, 2016 - 11:13","group_id":"0"}},{"node":{"title":"I remember the kickstarter campaign","content":"\n@Irene Lanza introduced us to the project a while ago, and I found it very interesting that while it usually\u00a0takes a lot of \"manual\" training to learn echo-location - basically to hear acutely the echo of the tongue click, this kind of tech mediated approach can speed up learning.\nHave you guys managed to move beyond prototyping? Are results coming along nicely..?\n","comment_id":"23612","post_id":"6506","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, July 12, 2016 - 16:30","group_id":"0"}},{"node":{"title":"Well, the founder is not here on the website","content":"\n..but maybe @Maria knows more?\n","comment_id":"23611","post_id":"6547","user_id":"32","parent_comment_id":"23607","creation_date":"Tuesday, July 12, 2016 - 12:56","group_id":"0"}},{"node":{"title":"About the article and the idea...","content":"\nThe article contains a few phrases I really liked and I would like to express my delight about them. I think of the \u201cCan other senses compensate for sight deficiency?\u201d problem which is asked at the beginning. Also, I think of the \u201ca technology that enables blind and vision impaired to mediate their perception of their environment and interact with their surroundings\u201d thing. This is such a nice, simple and healthy way of talking about the project and building it. I checked the website too and I liked the fact that it says a lot about the project and what's coming next.\u00a0I would really like this to extend and I hope to hear more about this in the near future. Thanks for sharing!\u00a0\n","comment_id":"23608","post_id":"6506","user_id":"8856","parent_comment_id":"0","creation_date":"Tuesday, July 12, 2016 - 11:10","group_id":"0"}},{"node":{"title":"Thank you for sharing this wonderful and useful story!","content":"\nI honestly think this is a very interesting and practical idea. The ones involved in this activity didn\u2019t only help those people be more comfortable with the weather conditions from there. You helped the environment too. (Now I\u2019m thinking about the long time that it takes for plastics to biodegrade \u2013 such a well-known problem.) You basically killed two birds with one stone. I think this is the kind of initiative we all need to solve the problems around us. So happy for this! Well done!\nAlso, are you planning to extend this project into other countries or regions? Do you have the resources? I\u2019m very curious.\n","comment_id":"23607","post_id":"6547","user_id":"8856","parent_comment_id":"0","creation_date":"Tuesday, July 12, 2016 - 10:59","group_id":"0"}},{"node":{"title":"I\u2019m sixteen and I find this concept relatable and useful...","content":"\nI really enjoyed reading this article and I find familiar to me some\u00a0of your influences (the Tumblr users, I\u2019ll check out the others at some point)! I actually talked with my mother (who is a psychologist) about this. We both agreed that this might help a lot. Young people feel attracted to creative ideas and not that typical solutions to problems, especially when it comes to this uncomfortable subject. I encourage you to keep going and develop this project. But let me give you a little piece of advice: just pay attention to the way you express your way of thinking about this project, as the subject is not that nice and easy to work with. Also, don\u2019t forget to ask for as much feedback as possible (especially from young people, who might be open and curious about this \u2013 like I am).\nThanks for sharing this and good luck with it! What are the next \"challanges\" going to consist of? Let me know if you need a young girl\u2019s opinion. I\u2019m really interested into this subject and I would like to give some help. :)\n","comment_id":"23606","post_id":"6510","user_id":"8856","parent_comment_id":"0","creation_date":"Tuesday, July 12, 2016 - 10:54","group_id":"0"}},{"node":{"title":"Amazing","content":"\nThis is a fantastic and fascinating story.\nI've already suggested this as a possible build project to help support people living in refugee shelters in Europe. I hope that we could find a way to implement it during the summer months.\n","comment_id":"23600","post_id":"6547","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, July 12, 2016 - 01:25","group_id":"0"}},{"node":{"title":"Go go go!","content":"\nEarly next week we'll know about Galway anyway, I think...\n","comment_id":"23599","post_id":"6541","user_id":"34","parent_comment_id":"23598","creation_date":"Monday, July 11, 2016 - 21:01","group_id":"5954"}},{"node":{"title":"Go go go!","content":"\nEarly next week we'll know about Galway anyway, I think...\n","comment_id":"23599","post_id":"6541","user_id":"34","parent_comment_id":"23598","creation_date":"Monday, July 11, 2016 - 21:01","group_id":"5954"}},{"node":{"title":"I'll make a start","content":"\nI've started looking at the posibilities through the Wellcome trust. There's an expectation that work will work mostly with UK\/ROI partners and collaborators, and be made mostly for audiences in those countries. That doesn't preclude the integration of partners\/audiences from further afield so i think there's a strong opportunity to pull in Edgeryders from around the OpenCare community if they're interested.\nMy initial thought is that i would want to wait til Friday to find out the result of the ECoC bid from Galway, but i will start to think about other possible projects that fit into the OpenCare framework and interest me from an artistic perspective.\nPerhaps i should have a conversation with @Nadia and @Noemi early next week when i've gotmy thoughts in order\n","comment_id":"23598","post_id":"6541","user_id":"6559","parent_comment_id":"23597","creation_date":"Monday, July 11, 2016 - 15:51","group_id":"5954"}},{"node":{"title":"I'll make a start","content":"\nI've started looking at the posibilities through the Wellcome trust. There's an expectation that work will work mostly with UK\/ROI partners and collaborators, and be made mostly for audiences in those countries. That doesn't preclude the integration of partners\/audiences from further afield so i think there's a strong opportunity to pull in Edgeryders from around the OpenCare community if they're interested.\nMy initial thought is that i would want to wait til Friday to find out the result of the ECoC bid from Galway, but i will start to think about other possible projects that fit into the OpenCare framework and interest me from an artistic perspective.\nPerhaps i should have a conversation with @Nadia and @Noemi early next week when i've gotmy thoughts in order\n","comment_id":"23598","post_id":"6541","user_id":"6559","parent_comment_id":"23597","creation_date":"Monday, July 11, 2016 - 15:51","group_id":"5954"}},{"node":{"title":"Let's do it","content":"\nThe trick is build an application where the alliance between you, as an artist, and Edgeryders, as deliverer of OpenCare, has added value for the funding agency. I see plenty of potential to do that. I am available myself, but probably @Nadia is the person most on top, who knows most about the stuff that will happen starting in the fall around OpenCare.\n","comment_id":"23597","post_id":"6541","user_id":"34","parent_comment_id":"23596","creation_date":"Monday, July 11, 2016 - 14:58","group_id":"5954"}},{"node":{"title":"Let's do it","content":"\nThe trick is build an application where the alliance between you, as an artist, and Edgeryders, as deliverer of OpenCare, has added value for the funding agency. I see plenty of potential to do that. I am available myself, but probably @Nadia is the person most on top, who knows most about the stuff that will happen starting in the fall around OpenCare.\n","comment_id":"23597","post_id":"6541","user_id":"34","parent_comment_id":"23596","creation_date":"Monday, July 11, 2016 - 14:58","group_id":"5954"}},{"node":{"title":"Definitely","content":"\nYes, an application would make more sense. I wouldn't expect Edgeryders to actually create the grant themselves.\nI would be happy to take the lead on developing an application that fits this purpose.\nWe would want to have a discussion about how we might approach this process, and what we would want a successful outcome to be, but otherwise i'm happy to use my time and energy to start this process.\n","comment_id":"23596","post_id":"6541","user_id":"6559","parent_comment_id":"0","creation_date":"Monday, July 11, 2016 - 14:08","group_id":"5954"}},{"node":{"title":"Definitely","content":"\nYes, an application would make more sense. I wouldn't expect Edgeryders to actually create the grant themselves.\nI would be happy to take the lead on developing an application that fits this purpose.\nWe would want to have a discussion about how we might approach this process, and what we would want a successful outcome to be, but otherwise i'm happy to use my time and energy to start this process.\n","comment_id":"23596","post_id":"6541","user_id":"6559","parent_comment_id":"0","creation_date":"Monday, July 11, 2016 - 14:08","group_id":"5954"}},{"node":{"title":"Makes sense","content":"\nI assume you mean \"Edgeryders [should] develop a grant application\u00a0that brought together the OpenCare strand with those of us on the cultural side\", right? Like, apply to the Wellcome Trust or similar?\nIt makes a ton of sense. As so many things in Edgeryders, it needs somebody in the lead. Would you be prepared to lead?\n","comment_id":"23593","post_id":"6541","user_id":"34","parent_comment_id":"0","creation_date":"Monday, July 11, 2016 - 10:15","group_id":"5954"}},{"node":{"title":"Makes sense","content":"\nI assume you mean \"Edgeryders [should] develop a grant application\u00a0that brought together the OpenCare strand with those of us on the cultural side\", right? Like, apply to the Wellcome Trust or similar?\nIt makes a ton of sense. As so many things in Edgeryders, it needs somebody in the lead. Would you be prepared to lead?\n","comment_id":"23593","post_id":"6541","user_id":"34","parent_comment_id":"0","creation_date":"Monday, July 11, 2016 - 10:15","group_id":"5954"}},{"node":{"title":"A revelatory article","content":"\n@TINO SANANDAJI, thank you for this clear writing, very well explained!\n\u00a0 or me, it was important to know the difference between inovation and\u00a0\u00a0disruptive entrepreneurship, and\u00a0\u00a0evasive entrepreneurship.\n\n\u00a0Another example of such action is also the movement \u00a0Let's do it, \u00a0https:\/\/www.letsdoitworld.org\/, originated in Estonia, who now functions \u00a0like an institution, but it began on a smaller scale, as a private initiative.\n\n\u00a0That could also be a challenge for the status of the evasive entrpreneurship, because when the initiative grows, it also grows into an establishment, with rules and \u00a0papers to fill etc etc.\n\n\u00a0And I could also give an\u00a0example\u00a0that does not relate to care giving, but to arts.\nThere are hundreds of music composers (who write classical contemporary music) who do not register their scores to any property rights companies, because this is a difficult and long procces, to many papers to fill for artists and too little gain.\nSo many of them just give their music to\u00a0different performers who do not pay rights to play the music (they are also poor and need to make a name for themselves)\nThe avantgarde art is \u00a0usually very far form the industry, there are no kings\u00a0who would hire composers for their courts :), and it is impossible to make a living from actual art, most of them have other jobs.\u00a0\nSo, the evolution of\u00a0modern music is made by simply avoiding the institution of author rights when dealing with indepenendent performers.\n\u00a0We would not do so, though, when dealing with National Orchestras or \u00a0other rich established music institutions :)\u00a0\n\u00a0\n","comment_id":"23591","post_id":"6484","user_id":"8842","parent_comment_id":"0","creation_date":"Monday, July 11, 2016 - 08:52","group_id":"0"}},{"node":{"title":"Exploit the architecture of human cognition","content":"\nAnd after all of this inspiring stuff, I am going to offer some information I have come across, and that is going to sound dry and heartless in comparison. :-)\nThere is a concept at the crossroads of evolutionary biology, anthropology and psychology\u00a0called cultural evolution. The idea is that, in humans, culture and biology intertwine dynamically: evolutionary pressure makes us evolve mixed packages of genes and culture that make us fitter for survival. These packages repurpose and harness pre-existent packages. If you want to know more, this book is a fantastic introduction.\u00a0\nResearchers in this area have figured out why humans have evolved rites of passage, which can be very costly (in some tribes, young men especially have to go through gruesome trials to become full members of the tribe). So where's the benefit? The benefit is that these rituals cement the tribe's cohesion, making it more fit to withstand intergroup competition, a major driver of human evolution (and suspected to have been a driver of non-human primates before we came around). How can rituals cement cohesion across participants? They harness certain biases in human cognition. For example, it has been found that doing things in sync enhances the propensity to cooperate. Consider the following\u00a0experiment.\n\nParticipants are randomly\u00a0divided in two groups. People in group A are asked to perform a simple physical act in sync with each other, like clapping hands. People in group B are asked to per form the same act, but not in sync.\nAll participants are asked to play a simple\u00a0game where they need to choose between a \"cooperate\" and a \"defect\" strategy, like the Prisoner's dilemma.\u00a0\nMembers of group A have a measurably higher probability to cooperate.\n\nSo, to make strangers connect, a sensible strategy seems to be to \"think like a hacker\" and\u00a0exploit the biases in human cognition, such as the tendency to cooperate more with people you have done something in sync with. A major bias is that we seem\u00a0to be hardwired for forming groups. It is very, very easy to make humans behave like a group \u2013 check out Wilfred Bion's work for that.\u00a0\nObviously, this same kind of hacking is successfully used every day by racist groups, who succeed in making people hate and despise other people just like them, who have never hurt the haters and whom said haters do not even know anyway. Like the Force in Star Wars, human cognition has a dark side... but you guys, I',m sure, will stay away from it.\u00a0\n","comment_id":"23590","post_id":"6225","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, July 9, 2016 - 21:16","group_id":"0"}},{"node":{"title":"Cool! What's the source?","content":"\nHello Moushira, this looks really interesting. Where did you find it? Did you actually talk to Hugo or others in his team?\u00a0\nI ak because, in order to process this information into an ethnography, it is important to assess who is the source (the \"informant\", as ethnographers say), and how far removed he or she is from written text. More information is in our Data strategy.\u00a0Especially p. 10-11 contain\u00a0data quality-enhancing advice for cases in which the informant can't or won't themselves write their own story.\u00a0\n","comment_id":"23589","post_id":"6537","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, July 9, 2016 - 20:51","group_id":"0"}},{"node":{"title":"We used to call it \"eye vibing\"","content":"\nBack in the hippie glory days some of the more spiritually-inclined ones of us routinely engaged in this sort of mini-meditation with another person. It wasn't structured; we would just do it when we felt like it.\u00a0 It often led to better mutual understanding and empathy, which was usually discerned in whatever conversation followed the session. \u00a0\n","comment_id":"23583","post_id":"6225","user_id":"8169","parent_comment_id":"22356","creation_date":"Friday, July 8, 2016 - 21:12","group_id":"0"}},{"node":{"title":"Community call with Franca about refugee language learning","content":"\nThis might be of interest to @Tomma @dennis @Liza @simon.messmer @Luisa @makerphil and.. well so many others :-)\n","comment_id":"23580","post_id":"6533","user_id":"32","parent_comment_id":"0","creation_date":"Friday, July 8, 2016 - 18:41","group_id":"5954"}},{"node":{"title":"Community call with Franca about refugee language learning","content":"\nThis might be of interest to @Tomma @dennis @Liza @simon.messmer @Luisa @makerphil and.. well so many others :-)\n","comment_id":"23580","post_id":"6533","user_id":"32","parent_comment_id":"0","creation_date":"Friday, July 8, 2016 - 18:41","group_id":"5954"}},{"node":{"title":"Welcome door","content":"\n@Noemi\nIt seems to me a great idea. Maybe the community call could be like a \u201cWelcome door\u201d for the platform. In effect in these last days I read a lot of different stuff on the platform, different topics, a lot of comments, of comments\u2026\nSo it could take a little bit of time to understand where and how to contribute.\nSo if, at the end of the call, every one that is newcomer could have this link, this first post, he could start to write from there. Less confusing and more effective!\nLet\u2019s try!\n;)\n","comment_id":"23570","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 22:24","group_id":"5954"}},{"node":{"title":"Welcome door","content":"\n@Noemi\nIt seems to me a great idea. Maybe the community call could be like a \u201cWelcome door\u201d for the platform. In effect in these last days I read a lot of different stuff on the platform, different topics, a lot of comments, of comments\u2026\nSo it could take a little bit of time to understand where and how to contribute.\nSo if, at the end of the call, every one that is newcomer could have this link, this first post, he could start to write from there. Less confusing and more effective!\nLet\u2019s try!\n;)\n","comment_id":"23570","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 22:24","group_id":"5954"}},{"node":{"title":"Thanks everyone!","content":"\n@Noemi, it was great talking to you this afternoon, thanks again. Your link will be of much help as well!\u00a0\nHi, @Natalia Skoczylas, thanks for the reply :)\u00a0I do have some specified questions, they're mostly related to why you are motivated to use the platform and what interactions happen on the platform. I can share them with you beforehand or simply talk them through with you over Skype. I'd really appreciate interviewing you! Could you send me your e-mail address or send me an e-mail at jortklarenbeek@gmail.com?\u00a0\nAnd\u00a0@Alex_Levene, thanks so much. Early next week should work out perfectly!\u00a0Could you, too, send me your e-mail address or send me an e-mail at jortklarenbeek@gmail.com? The theories might sound a bit complex, but the interview questions should be fine!\u00a0\nHi @Alberto, I've heard (and read) quite a\u00a0lot about your work. Impressive, to say the least! Although\u00a0Media and Entertainment is indeed a long shot away from network science,\u00a0the platform can definitely be viewed from that perspective.\u00a0In some way or another, media and entertainment can be related to anything. In the case of Edgeryders, I can\u00a0reference\u00a0your community work mostly to\u00a0marketing strategies and theories, such as Kotler's Marketing 3.0, but also to\u00a0theories on\u00a0co-creation and brand communities. Noemi already explained to me that this perspective is not one on which you base your work (at all) here at Edgeryders,\u00a0but the similarities\u00a0are still there. I would really like to explain it a bit more detailed 'in person' (over Skype) and possibly interview you. Would you be willing to cooperate?\u00a0\n\u00a0\n","comment_id":"23568","post_id":"6532","user_id":"8386","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 20:52","group_id":"0"}},{"node":{"title":"\"Media and entertainment\"?","content":"\nHello @Jort Klarenbeek , welcome. We are delighted that people want to study Edgeryders \u2013 I am doing so myself, from a network science perspective. But, Media and Entertainment? That's not how I'd classify whatever it is we do. Are you sure we are the right subject for your studies?\n","comment_id":"23565","post_id":"6532","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 17:00","group_id":"0"}},{"node":{"title":"More like your story","content":"\nBasically an update of what you have been doing over the past years, to make it more cost effective for you to get back on track. Someone will document and post it online straight away, without you needing to make too much effort. That way it's easier to find opportunities for you in OpenCare - right now I have no idea what your aspirations are related to care and communities (broadly understood).\nSharing key stories could also be interesting, don't let me stop you.\nLet me know eventually if you will make it on Monday, I created a new event with the same link as las time:\u00a0https:\/\/meet.jit.si\/opencare\u00a0\n\u00a0\n","comment_id":"23564","post_id":"6511","user_id":"32","parent_comment_id":"23562","creation_date":"Thursday, July 7, 2016 - 14:06","group_id":"5954"}},{"node":{"title":"More like your story","content":"\nBasically an update of what you have been doing over the past years, to make it more cost effective for you to get back on track. Someone will document and post it online straight away, without you needing to make too much effort. That way it's easier to find opportunities for you in OpenCare - right now I have no idea what your aspirations are related to care and communities (broadly understood).\nSharing key stories could also be interesting, don't let me stop you.\nLet me know eventually if you will make it on Monday, I created a new event with the same link as las time:\u00a0https:\/\/meet.jit.si\/opencare\u00a0\n\u00a0\n","comment_id":"23564","post_id":"6511","user_id":"32","parent_comment_id":"23562","creation_date":"Thursday, July 7, 2016 - 14:06","group_id":"5954"}},{"node":{"title":"Found it! Why strangers are better healers.","content":"\nre: my observation above. I was just listening to one of my favourite podcasts Invisibilia, and their latest episode talks about mental health patients and alternatives to\u00a0failing recovery systems all over the world. Like some here already intuit, meaningful help can come from\u00a0supportive community environments (interesting examples from a\u00a0town in Belgium called Geel where families host \"patients\" for decades!, or\u00a0housing sites in NYC with 40% mentally ill people living among the others).\nA key takeaway for me personally is this: in a lot of cases what breaks how we think about mental illness is the belief\u00a0that it needs to be fixed, that patients\u00a0need to go back to some initial state of wellbeing;\u00a0families, through proximity and attachment,\u00a0are\u00a0most prone to exemplify this in the daily lives of someone recovering after treatment -\u00a0through a way of expressing emotions like 1) criticism 2) hostility 3) emotional overinvolvement. The mechanisms seem complex (can be subtleties, or\u00a0just body language..), but it turns out that\u00a0all 3 point to how difficult it is for family to accept and empathize,\u00a0and only load too much pressure on the person in question.\u00a0Strangers, on the other hand, do not really care THAT much and can be better healers because they \"don't see you as a bundle of problems that need to be fixed\".\u00a0\nBut: they do become kind of like a second family, so not complete strangers after all.\nI looked up some of the original studies attesting psychocultural effects on mental recovery - pdf here.\nHighly recommended.\n\u00a0\n","comment_id":"23563","post_id":"6354","user_id":"32","parent_comment_id":"22931","creation_date":"Thursday, July 7, 2016 - 13:19","group_id":"0"}},{"node":{"title":"So if I understood right...","content":"\nFor next Monday's community call, share which are\u00a0the key stories from OpenCare from my perspective. Is that it? If so, it's a good idea!\u00a0\nStill don't know where I'll be therefore can't say if I'll be able to make the community call, however will post on the platform. Works for you?\nThanks @Noemi for showing the directions! :-)\n","comment_id":"23562","post_id":"6511","user_id":"344","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 12:22","group_id":"5954"}},{"node":{"title":"So if I understood right...","content":"\nFor next Monday's community call, share which are\u00a0the key stories from OpenCare from my perspective. Is that it? If so, it's a good idea!\u00a0\nStill don't know where I'll be therefore can't say if I'll be able to make the community call, however will post on the platform. Works for you?\nThanks @Noemi for showing the directions! :-)\n","comment_id":"23562","post_id":"6511","user_id":"344","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 12:22","group_id":"5954"}},{"node":{"title":"Happy to help if i can","content":"\nHi Jort,\nAs Noemi said, i've been around on the Edgeryders platform for only a short time but i'd be happy to help you in any way i can. You might need to explain some of your theories and concepts as i'm more of an 'interested bystander' than a technical expert.\nLike Natalia, i can fit a Skype session in during the day early next week. Let me know if you want to speak.\nAlex\n","comment_id":"23561","post_id":"6532","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 12:15","group_id":"0"}},{"node":{"title":"Welcome @Jort Klarenbeek , I","content":"\nWelcome @Jort Klarenbeek , I could help you out - do you have specified questions? I could find some time next week for a skype as well.\u00a0\n","comment_id":"23559","post_id":"6532","user_id":"678","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 11:40","group_id":"0"}},{"node":{"title":"We talked about where Op3n Meetups fit in the engagement efforts","content":"\nHi @Tiago and @Franca, this is for you and for those who couldn't make it to the call:\nWith @Alberto @Costantino we got sidetracked from the actual discussions around Meetups Adventure due to some different opinions we have about how meetups would support the bigger community building efforts. In the OpenCare research project we have an engagement strategy to converge project activities by ER, WeMake and all partners into stories and conversations between participants which would take place on this platform. Those will become research data and will result in a report for our funder, the European Commission.\u00a0\nNow:\u00a0we have a basic Engagement strategy based on our project proposal. You can read it here (it's very short and mainly to guide partners efforts).\u00a0Where we are having difficulties is in implementing it - due to some technicalities with the funder and our own challenges to coordinate all efforts and support the OpenCare conversation, which is the researh engine of the entire project (we are mandated to drive\u00a0\"collective intelligence\" around community driven care solutions). A lot of this is detailed issues.. not sure if this is the place for what could also be boring stuff for people not involved in the operational side of opencare.\nWhat would be great as an actionable for me is to convene key stories to be told in the community calls and report on those with minimum effort online.\nWe need to make it easier and cheap\u00a0for people to share stories.\nSo how about in the next community call we start with ourselves? Tiago, for you this is a quick way of fixing the\u00a0time gap of your being away from ER :-)\n","comment_id":"23558","post_id":"6511","user_id":"32","parent_comment_id":"23513","creation_date":"Thursday, July 7, 2016 - 11:28","group_id":"5954"}},{"node":{"title":"We talked about where Op3n Meetups fit in the engagement efforts","content":"\nHi @Tiago and @Franca, this is for you and for those who couldn't make it to the call:\nWith @Alberto @Costantino we got sidetracked from the actual discussions around Meetups Adventure due to some different opinions we have about how meetups would support the bigger community building efforts. In the OpenCare research project we have an engagement strategy to converge project activities by ER, WeMake and all partners into stories and conversations between participants which would take place on this platform. Those will become research data and will result in a report for our funder, the European Commission.\u00a0\nNow:\u00a0we have a basic Engagement strategy based on our project proposal. You can read it here (it's very short and mainly to guide partners efforts).\u00a0Where we are having difficulties is in implementing it - due to some technicalities with the funder and our own challenges to coordinate all efforts and support the OpenCare conversation, which is the researh engine of the entire project (we are mandated to drive\u00a0\"collective intelligence\" around community driven care solutions). A lot of this is detailed issues.. not sure if this is the place for what could also be boring stuff for people not involved in the operational side of opencare.\nWhat would be great as an actionable for me is to convene key stories to be told in the community calls and report on those with minimum effort online.\nWe need to make it easier and cheap\u00a0for people to share stories.\nSo how about in the next community call we start with ourselves? Tiago, for you this is a quick way of fixing the\u00a0time gap of your being away from ER :-)\n","comment_id":"23558","post_id":"6511","user_id":"32","parent_comment_id":"23513","creation_date":"Thursday, July 7, 2016 - 11:28","group_id":"5954"}},{"node":{"title":"So the Edge of #FoodWaste is molecular consumption.","content":"\nBrilliant!\n","comment_id":"23556","post_id":"6512","user_id":"32","parent_comment_id":"23495","creation_date":"Thursday, July 7, 2016 - 10:56","group_id":"0"}},{"node":{"title":"Agora for market. storytelling for brand development","content":"\nI asked about the work with producers because it's not obvious from your website - which looks more like\u00a0a pitch to clients.\nVery interesting, this bridging. I think I understand it, thinking too at how Edgeryders the organisation interfaces with clients and community as a facilitator.\u00a0You operate under a novel model that respects market principles, but at the same time innovates in rewiring dynamics between traditionally disconnected stakeholders. And if you guys know how to package the story of localized food and taste, well you surely must be already riding this new\u00a0market.\u00a0\n","comment_id":"23555","post_id":"6512","user_id":"32","parent_comment_id":"23496","creation_date":"Thursday, July 7, 2016 - 10:54","group_id":"0"}},{"node":{"title":"Newcomers always sum it up better!","content":"\nHi again @Jort Klarenbeek!\u00a0\nNot sure if I sent this to you previously, but this post (should we incorporate?) from back when the organisation behind the platform was becoming\u00a0an organisation and the debate in what was\u00a0already a community is telling of the dynamics.\u00a0\nI already asked\u00a0@Natalia_Skoczylas & @Alex Levene if they want to be interviewed, let's see. Natalia has been around for a while, and Alex for less\u00a0- so you could get different takes.\nTalk to you later.\n","comment_id":"23549","post_id":"6532","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, July 7, 2016 - 09:23","group_id":"0"}},{"node":{"title":"thanks for the feedback!","content":"\n@Tiago:\nThese are exactly the questions we are dealing with right now. We started off with honeycomb cardboard as you see on the pictures because its very easy to work with even if you dont have proffessional tools. The Problem though: it\u00b4s not long lasting. The stuff we build with the the refugees about a month ago is already loosing its shape.\nThats why we\u00b4re currently working on prototyse out of chipwood tied together with cable ties. two cheap materials that you can get everywhere. The only tool needed is a drilling machine. One Set of wood panels can be assembled in three different ways according to the needs. The cable ties can be opened if the people want to build something else.\nHow can we make it personal though? Are people still motivated if every Box looks the same in the end?\n@Alberto:\nThe Camp we are working in, is quite open. As long as its not dangerous in any ways people can bring whatever they want.\u00a0\nThat seems to be another Problem: every camp has different rules, so its almost impossible to find a general context.\u00a0\n\u00a0\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"23532","post_id":"6514","user_id":"8589","parent_comment_id":"0","creation_date":"Tuesday, July 5, 2016 - 16:51","group_id":"0"}},{"node":{"title":"How to scale up regenerative food systems?","content":"\nI think the key lies on addressing the full spectrum of subsystems that effect food supply chains: physical - cultural - digital - logistical. It will certainly help if you get public procurement (ie.\u00a0in urban areas) into the game, since their supply chains can really have a huge\u00a0impact. In the EU only, every day there are 10 million public meals are served for free (hospitals, schools, jails, etc.), all paid by taxpayers money. This makes a strong case for asking for more organic, more local, more healthy, more climate-friendly. Our cities are going through a transition, and the hope is that as generational renewal is happening in city councils, this change will becoming more apparent.\n","comment_id":"23530","post_id":"6512","user_id":"8851","parent_comment_id":"23525","creation_date":"Tuesday, July 5, 2016 - 12:47","group_id":"0"}},{"node":{"title":"that's the key i think ","content":"\n'By this multilayered, multifaceted enterprise @Pavlos wants to change the paradigm. He believes that if the way we think about the time and space of food, meaning the time spent on preparation, growth, the human experience of food, it will have an impact on climate resilience, climate justice, biodiversity, water and soil conservation and will boost regenerative economies in rural areas. '\nReally love this way of thinking. Getting back in contact with the producers is one of the joys i found myself having the last couple of months. But how do you scale that up? Where do you set the time to deliver the knowledge to a lot of people? how can you coordinate that?\n\u00a0\n","comment_id":"23525","post_id":"6512","user_id":"8743","parent_comment_id":"0","creation_date":"Tuesday, July 5, 2016 - 11:07","group_id":"0"}},{"node":{"title":"But health care?","content":"\n@Pavlos , you absolutely rock \u2013 and thanks @Natalia Skoczylas for sharing. I am intrigued by this:\u00a0\nPavlos has seen plenty of interesting and viable practices and conclusions forming from the bottom-up, grassroots practice in Greece.\nCan you say more about these practices? I, for one, would be interested.\u00a0\n","comment_id":"23522","post_id":"6515","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, July 5, 2016 - 10:22","group_id":"0"}},{"node":{"title":"There must be some research about that","content":"\nI do not know much firsthand about depression and mental discomfort (lucky me). But I have heard that positive messages are not uplifting on depressed people, on the contrary. If you have doubts about when and how much to be humorous, you could look around for research about the matter. I am sure there must be loads, though I myself cannot think of anything...\u00a0\n","comment_id":"23520","post_id":"6510","user_id":"34","parent_comment_id":"23515","creation_date":"Tuesday, July 5, 2016 - 10:07","group_id":"0"}},{"node":{"title":"Humor vs. Approachability","content":"\nThank you! I think the main thing we are trying to do is make this topic more approachable. More\u00a0than humor it's perhaps about\u00a0the casual language and the interactive methods like the simulators and surveys. Of course it is still a serious topic and the options for professional help\u00a0should be presented in a serious manner. We don't want to make fun of the shittiness itself, but rather criticize\u00a0the social standards concerning emotional wellbeing,\u00a0in a somewhat\u00a0satirical \/ cynical way.\u00a0As far as using irony or humor to embrace the shittiness, I think that's very personal. Those comics that we mentioned for example often deal with these issues in a funny way and receive many comments saying that it's helpful. But surely there is also people who deal with it differently.\u00a0\n","comment_id":"23515","post_id":"6510","user_id":"8602","parent_comment_id":"23474","creation_date":"Monday, July 4, 2016 - 20:31","group_id":"0"}},{"node":{"title":"Slow connection :-(","content":"\nMy connection was too slow and unfortunately I couldn't follow. Intention is to follow up and try to catch up through the platform. Any assistance\u00a0on what to read first would be greatly appreciated.\nThanks! :-)\n","comment_id":"23513","post_id":"6511","user_id":"344","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 17:30","group_id":"5954"}},{"node":{"title":"Slow connection :-(","content":"\nMy connection was too slow and unfortunately I couldn't follow. Intention is to follow up and try to catch up through the platform. Any assistance\u00a0on what to read first would be greatly appreciated.\nThanks! :-)\n","comment_id":"23513","post_id":"6511","user_id":"344","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 17:30","group_id":"5954"}},{"node":{"title":"Roger that","content":"\nI really sympathize with this approach @Pavlos . Do you plan to open source your method in any way, so that others can, as you say, be inspired by what you do?\n","comment_id":"23512","post_id":"6512","user_id":"34","parent_comment_id":"23493","creation_date":"Monday, July 4, 2016 - 16:57","group_id":"0"}},{"node":{"title":"@Noemi! too difficult! I","content":"\n@Noemi! too difficult! I cannot hear anything and I was from a phone of a colleague.\nI asked every kind of burocratical permission ... I hope to be able for the next time... sorry! :((\n","comment_id":"23511","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 16:56","group_id":"5954"}},{"node":{"title":"@Noemi! too difficult! I","content":"\n@Noemi! too difficult! I cannot hear anything and I was from a phone of a colleague.\nI asked every kind of burocratical permission ... I hope to be able for the next time... sorry! :((\n","comment_id":"23511","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 16:56","group_id":"5954"}},{"node":{"title":"Thanks","content":"\n@Alberto gamification is the right word. The app works as a city-rally including different types of challenges. We are already in touch with institutions like bars and caf\u00e9s. Still we have collect more but this will happen as soon as we get it expanded. We work on it.\n","comment_id":"23510","post_id":"6501","user_id":"8591","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 16:30","group_id":"0"}},{"node":{"title":"@Noemi! Have you alredy","content":"\n@Noemi! Have you alredy started the call?\n","comment_id":"23508","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 16:26","group_id":"5954"}},{"node":{"title":"@Noemi! Have you alredy","content":"\n@Noemi! Have you alredy started the call?\n","comment_id":"23508","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 16:26","group_id":"5954"}},{"node":{"title":"Yes!","content":"\nI agree, @Ezio_Manzini. Specifically, I agree with your item 4. An analogy: Edgeryders is enabled by openness (in both the sense you mention). Openness is a big constraint on how the Edgeryders organisation is built and develops. For example, the need to stay open (and be perceived as such) drove our choice to be a not-for-profit: this choice signals that we are not trying to be extractive in our social contract between company\u00a0and\u00a0community. Similarly, I expect heavy conditioning of openness on the design of open care services.\u00a0\n","comment_id":"23506","post_id":"6521","user_id":"34","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 15:04","group_id":"5954"}},{"node":{"title":"Yes!","content":"\nI agree, @Ezio_Manzini. Specifically, I agree with your item 4. An analogy: Edgeryders is enabled by openness (in both the sense you mention). Openness is a big constraint on how the Edgeryders organisation is built and develops. For example, the need to stay open (and be perceived as such) drove our choice to be a not-for-profit: this choice signals that we are not trying to be extractive in our social contract between company\u00a0and\u00a0community. Similarly, I expect heavy conditioning of openness on the design of open care services.\u00a0\n","comment_id":"23506","post_id":"6521","user_id":"34","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 15:04","group_id":"5954"}},{"node":{"title":"Thanks @Noemi","content":"\nThanks @Noemi\nThe page says \"access denied. 403 error\"... :(\nbut ok for Hangouts\nsee you late!\n","comment_id":"23501","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 14:01","group_id":"5954"}},{"node":{"title":"Thanks @Noemi","content":"\nThanks @Noemi\nThe page says \"access denied. 403 error\"... :(\nbut ok for Hangouts\nsee you late!\n","comment_id":"23501","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 14:01","group_id":"5954"}},{"node":{"title":"It works for me..","content":"\nKeep trying and try also google hangouts. If the latter works we'll move there, just to make sure you can join :)\n","comment_id":"23500","post_id":"6511","user_id":"32","parent_comment_id":"23499","creation_date":"Monday, July 4, 2016 - 13:53","group_id":"5954"}},{"node":{"title":"It works for me..","content":"\nKeep trying and try also google hangouts. If the latter works we'll move there, just to make sure you can join :)\n","comment_id":"23500","post_id":"6511","user_id":"32","parent_comment_id":"23499","creation_date":"Monday, July 4, 2016 - 13:53","group_id":"5954"}},{"node":{"title":"connection problems..","content":"\nDear @Noemi\nIwould like to join the call but I cannot open the link https:\/\/meet.jit.si\/opencare.\nIs it normal? You can open the link only some minutes before?\nI'm working from a pc od the City of Milan and so maybe we can have some problems..\nCould you help me? Thanks! :)\nFranca\n","comment_id":"23499","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 13:44","group_id":"5954"}},{"node":{"title":"connection problems..","content":"\nDear @Noemi\nIwould like to join the call but I cannot open the link https:\/\/meet.jit.si\/opencare.\nIs it normal? You can open the link only some minutes before?\nI'm working from a pc od the City of Milan and so maybe we can have some problems..\nCould you help me? Thanks! :)\nFranca\n","comment_id":"23499","post_id":"6511","user_id":"8807","parent_comment_id":"0","creation_date":"Monday, July 4, 2016 - 13:44","group_id":"5954"}},{"node":{"title":"Greece is working out a Plan C for Europe.","content":"\nDefinitely! There are several documentary crews coming over to Greece in the last 1.5 years with some really great questions.\nHere is an example:\u00a0https:\/\/www.youtube.com\/watch?v=A0KNbKvYn5w\nAnd here is my documentary \"Farming on Crisis?\" (2012), which shares the stories of young\u00a0people returning to the land, in seek of ways out of unemployment.\nI do believe that in the context of #Brexit, there are several interesting lessons to be learned from the social solutions prototyped by communities in Greece, what I like to call the \"Plan C\". Producing\u00a0a positive, thoughtful documentary film for the transition process happening in Greece is an idea I am very keen in discussing further.\n","comment_id":"23497","post_id":"6515","user_id":"8851","parent_comment_id":"23486","creation_date":"Monday, July 4, 2016 - 11:18","group_id":"0"}},{"node":{"title":"From Seed to Soil","content":"\nMost agencies\/companies\/communities etc, use the rather industrial\/reductionist\u00a0term \"from farm to fork\", thus missing two important aspects: \"from seed to farm\" (eg.\u00a0biodiversity) and from \"fork to stomach\" (eg.\u00a0digestion\/human health & nutrition\").\u00a0I totally agree with the exciting proposal \"from seed to compost\/soil\", as this would really close the loop (eg.\u00a0recycling).\nWhen designing menu concepts\u00a0at\u00a0We Deliver Taste, we have an acute focus on human digestion. This doesn't only have to do with the quality and transformation\u00a0of ingredients (ie.\u00a0the way a pasta dries influences the survival of certain enzymes that are beneficial to digestion and energy conversion in our body cells), but also taking into account different physiogeographic elements that are related to the kitchen (ie.\u00a0how does temperature of the type of water in a certain location affects digestion)? When talking about \"food waste\" we usually focus on poor post-harvesting technologies, market anomalies, food choices, etc. But what if we extended our view at the molecular level of our food consumption, for example, how do our food choices affect our organism's ability to digest and thus convert energy for moving our muscles and brains? Looking at the modern, industrialized food systems, the biggest food wastage happens inside our bodies.\nPrototyping in the physical\/cultural\/digital\/logistical aspects of the food supply chain, bringing transparency and education in the food supply chain\u00a0-both locally and internationally- is, in my opinion, a very, very\u00a0potent tool in improving wider social\/political problems. Maybe because food occupies the largest share of the global economy, so any change has considerable impact. Or maybe because people just connect!\nOnce this happens, when cities start looking at their supply chains in terms of an\u00a0\"urban metabolism\" (ie.\u00a0energy\/food going in and out) then we can start designing supply chains that connect the urban with the rural in equal terms.\n","comment_id":"23495","post_id":"6512","user_id":"8851","parent_comment_id":"23485","creation_date":"Monday, July 4, 2016 - 11:09","group_id":"0"}},{"node":{"title":"Provide a service for an Agora","content":"\nAfter researching and working for several years with small scale, artisanal farmers and grassroots communities (ie. Slow Food &\u00a0ARC2020) our team at We Deliver Taste decided to bring a transformative process into the market, because it is the markets that need to change. Our vision is to bring more transparency and education in food supply chains and the market, thus empowering all actors involved to become real game players. New technologies and\u00a0open data systems are proving to be really strong allies, allowing for more personalised service, more market awareness and more efficiency, without having to sacrifice the taste quality and cultural story of food and its territory, in the name of \"competitiveness\".\u00a0\nThe producers we work with are the real actors at the bottom. If they provide us with the right tools to work (eg.\u00a0good quality, nutritiouts ingredients), then we are able to pass them over to talented chefs, who become themselves storytellers of these foods and their territories. We believe that this is a trully bottom-up process, where we as supply chain managers become the facilitators of this process.\nOur clients (from small family businesses to large companies)\u00a0like this approach very much, because they understand that from one side there is more public awareness, on the other there is no much skill in the market to support this transition. Maybe it is true that we \"provide a service for a\u00a0market\", but it is also true that we see the \"market\" as an \"Agora\" which is not merely a space for economic transaction, but rather a place for participation and dialogue. Connecting conscious consumers with the stories of responsible producers is proving to be very strong. It just happens to sell well, too, so we as researchers don't necessarily have to find a job for a large multi-national agrifood company, but rather try to provide incentives for us, our clients\/friends and make the system work for everyone.\nIn terms of criteria for selecting producers, thay are not really imposed by us, but rather suggested by the principles of agroecology, organic farming, social enterprising, family enterprise, with know benefits to the food market, \"from seed to soil\".\n","comment_id":"23496","post_id":"6512","user_id":"8851","parent_comment_id":"23484","creation_date":"Monday, July 4, 2016 - 11:09","group_id":"0"}},{"node":{"title":"Make!","content":"\nI have written to the maker from India, who told me that after the huge publicity they got last month (due to a short video going viral in social media) they could not start discussing a possible collaboration until October. One thing it that we cannot really wait, when there is such a huge demand\/need already now. The most important, though, is that what we're trying to set up here is a positive example of closing the production\/consumption\/(non) waste loop by connecting small local actors that represent the links of this chain. Hopefully this will inspire more communities to think likewise, so I would say that the focus is on process design rather than the final product.\nAdditionally, there is certainly extra (environmental)\u00a0benefit from making\u00a0the product locally, instead of transporting it from India. This would also require an import company, possibly also huge bureocracy from outside the EU. The whole idea of monitoring all the metrics involved can also be views as a social experiment, in our effort to better understand the lean economics of regenerative systems. These plate offer a pretty good use case, in my opinion.\n","comment_id":"23493","post_id":"6512","user_id":"8851","parent_comment_id":"23491","creation_date":"Monday, July 4, 2016 - 10:41","group_id":"0"}},{"node":{"title":"Make or buy","content":"\nWow, interesting. But here's what I don't understand (and hopefully @Pavlos can help me here):\u00a0\nPavlos wants to recreate the whole system necessary for producing such a dish - an industrial designer who'd made the moulds, a baker, ideally struggling to survive in the market, a flour producer, etc.\nWhy do you think this is better than importing? If this is a value chain that can efficiently deliver the dish, a small (social) advantage can be had by locating it in Greece rather than India, but at the end of the day everybody else (Italians, Germans, Austrians...) would still be importing... from the company at the fountainhead of this value chain. Or is it a sort of \u00a0open system, with each camp using open source knowledge to make its own?\u00a0\n","comment_id":"23491","post_id":"6512","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, July 3, 2016 - 20:31","group_id":"0"}},{"node":{"title":"Young men and construction materials","content":"\nThanks for sharing, @Tomma , and welcome to Edgeryders. This was really inspiring!\nExactly the same point about young men not being catered to was made by @Alex Levene in the context of The Jungle. We have been fantasizing about \"emergent\" refugee camps being made of only a welcome committee, fast Internet and construction material; the newcomers themselves would build what they need.\u00a0\nHowever, authorities\u00a0really\u00a0dislike (one could almost say fear)\u00a0such an outcome. Interesting stuff was built and deployed in The Jungle (even a theatre!), but then the people in charge started searching incoming vehicles for construction material. It was completely disallowed to bring anything to make anything into\u00a0the camp.\u00a0\nHow is the situation in Berlin?\n","comment_id":"23490","post_id":"6514","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, July 3, 2016 - 20:24","group_id":"0"}},{"node":{"title":"Cool!","content":"\nThanks for sharing. It's highly surprising and instructive!\nI understand the context is not favorable for such thinking as there are many unmet basic needs, however it wouldn't hurt to give it some thought: in an exercise attempting to overcome the 'disposable culture', here some warm-up question I came up with:\n\nHow might we build reusable furniture in a refugee camps?\nHow might we build long-lasting furniture in a refugee camp?\nHow might we build environmentally friendly disposable furniture in a refugee camp?\nHow might we build furniture in a refugee camp that I'll want to keep later?\n\nI don't mean to say these are questions to be answered, rather just using them as stimulation to get to some other question(s). Or just forget about them if you think their\u00a0rubbish! :-)\nI'm thinking on strong materials but it could be many things really like making it personal, giving it an emotional side to it (more than it already has), for example using pictures of friends from the camp, signatures, words. Could this become some sort of 'souvenir'? Could this be sold to the locals? (also serving the purpose of integration). Maybe it's something that serves different purposes (multi-functions)?\nSome inspiration: - cardboard furniture (http:\/\/inhabitat.com\/tag\/cardboard-furniture\/)\nAgain, thank you for sharing! :-)\n","comment_id":"23487","post_id":"6514","user_id":"344","parent_comment_id":"0","creation_date":"Saturday, July 2, 2016 - 20:08","group_id":"0"}},{"node":{"title":"Wow, truly impressive! ","content":"\nThank you @Natalia Skoczylas for sharing this inspiring reality!\u00a0\nThank you @Pavlos for doing such a beautiful\u00a0work! I find this particularly interestnig:\u00a0\n\"Even though Greek politicians and intellectuals in many cases seem stuck decades ago and their resistance to change is huge, what's happening around proves its inescapable. Pavlos thinks the best for them would be to funnel the energy into protecting marginalized groups, including the refugees, to lower their costs of transition.\"\nDocumenting (also visually)\u00a0the whole *new*\u00a0process itself should be useful for detailed analysis of what works and what doesn't, so to improve in next iterations and\/or copy in other contexts.\u00a0\n","comment_id":"23486","post_id":"6515","user_id":"344","parent_comment_id":"0","creation_date":"Saturday, July 2, 2016 - 19:10","group_id":"0"}},{"node":{"title":"\"From seed to stomach\"","content":"\nHi @Natalia, Hi @Pavlos ! Nice to meet you guys!\nIt's a very interesting example and above all:\u00a0it feels like the people \/ farmers \/ industry \/ market \/ government \/ processes are accepting these kind of changes. Do you believe such initiative could also work in an another contexts? In other words, in which different contexts are you working on? (countries, urban vs rural, etc).\u00a0\nAlso it was mentioned in the post about looking at the system \"from seed to stomach\". Wouldn't the whole cycle be \"from seed to compost\"? And in this sense, are you also focusing into human :-)proteins:-)waste\u00a0management?\n\u00a0\n","comment_id":"23485","post_id":"6512","user_id":"344","parent_comment_id":"0","creation_date":"Saturday, July 2, 2016 - 17:49","group_id":"0"}},{"node":{"title":"\"demonizing the market is wrong\" :-)","content":"\nLovely to meet you @Pavlos, and welcome to Edgeryders!\nI look forward to reading more, as Natalia is now paiting us a picture of you doing consultancy in\u00a0an ambitious way that incorporates incentive systems - targetting those with\u00a0\"access to power and money\". That seems different\u00a0from the other approaches we heard about, for example foodsharing by intentional communities and building grassroots movements - see @Paul_Free's story from Berlin entitled \"Gifteconomy\". The difference I see (again, look forward to learn more) is that you are looking at this as if you are providing a service for a market, instead of building it bottom up. Does it work for you so far? Can producers and others in the food chain\u00a0participate at their own initiative or does it depend on someone\u00a0selecting products for distribution or connection with businesses?\n\u00a0\n","comment_id":"23484","post_id":"6512","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, July 2, 2016 - 15:03","group_id":"0"}},{"node":{"title":"Some resources for local op3n meetups","content":"\nAs we think about Op3n Meetups formats, here are two to consider:\n\n1) Action oriented workshops - FeedForward methodology which we can apply by selecting snippets of stories from the online\u00a0community and connect them with stakeholders in our cities.\n\n2) Co-design workshops - the WeMake\u00a0model documented in the opencare playbook\u00a0-\u00a0section How Can I Make a Workshop Happen? (thx @Costantino & WeMake!)\n","comment_id":"23483","post_id":"6511","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, July 2, 2016 - 13:56","group_id":"5954"}},{"node":{"title":"Some resources for local op3n meetups","content":"\nAs we think about Op3n Meetups formats, here are two to consider:\n\n1) Action oriented workshops - FeedForward methodology which we can apply by selecting snippets of stories from the online\u00a0community and connect them with stakeholders in our cities.\n\n2) Co-design workshops - the WeMake\u00a0model documented in the opencare playbook\u00a0-\u00a0section How Can I Make a Workshop Happen? (thx @Costantino & WeMake!)\n","comment_id":"23483","post_id":"6511","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, July 2, 2016 - 13:56","group_id":"5954"}},{"node":{"title":"Your own investment ","content":"\nThank you for sharing this @tamarafuma, and welcome to OpenCare community.\nI don't know much about FES, but looked it up on wikipedia.\nAre you using a commercial device (I saw they are pretty expensive at 5-6000 USD)\u00a0or did you\u00a0find a cheaper variant?\u00a0\nIs there anything community members around here can help with? Let us know if you're looking to learn something specific or just to share your experience, and hopefully we can be useful somehow.\n\u00a0\n","comment_id":"23475","post_id":"6503","user_id":"32","parent_comment_id":"0","creation_date":"Friday, July 1, 2016 - 12:18","group_id":"0"}},{"node":{"title":"\"comforting cynical tea bags\" LOL","content":"\nYou guys have a very interesting list of perks for those willing to experience distress, kudos.\nSo you want to raise awareness about serious issues through\u00a0humor, or a lighthearted\u00a0approach. I'm guessing there is a difference to be made in approaching awareness this way versus advocating for mental\u00a0support\u00a0through humor. For the latter: does\u00a0(self)\u00a0irony\u00a0help\u00a0embrace\u00a0the shitiness of one's situation? hm, not sure.\n","comment_id":"23474","post_id":"6510","user_id":"32","parent_comment_id":"0","creation_date":"Friday, July 1, 2016 - 11:40","group_id":"0"}},{"node":{"title":"Not bad! ","content":"\nVery simple idea... it could actually work!\u00a0\nI don't understand the \"city-rally\" part, though. Is it gamified?\u00a0\nHave you sounded the idea out with bars and caf\u00e9s yet?\u00a0\n","comment_id":"23455","post_id":"6501","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, June 30, 2016 - 13:13","group_id":"0"}},{"node":{"title":"How to formulate a challenge","content":"\nIn our experience, addressing communities works best when you ask them to share stories: experiential data. Asking for opinions or points of view is a bad idea. You get low quality information: half-baked abstractions, ideology, prejudice... we all are most interesting when we share things we have experienced directly. Experience is\u00a0rich in content and deeply embedded in context. Looking at similar experiences (for example: being hospitalized) from many different points of view drives the \"collective\" in collective intelligence: the different experiences will combine into a community-validated point of view (for example, it becomes easy to recognize a single experience as an outlier if everyone else had a different experience on something).\u00a0\nConsider the following question, taken by @Rossana Torri above:\u00a0\nWhat could be the added value of adopting a \u201cmaker\/fablab\u201d approach to \u201creframe\u201d care systems pushing this kind of tools\/skills\/places into \u201ccommunity-driven\u201d care systems?\nThis is not the kind of question you can directly ask a community. People will immediately go into\u00a0wishful thinking mode: \"we should..\" (\"bisognerebbe...\") and design irrealistic and broken systems that no one can implement. Individual citizens are not especially\u00a0good at systems design. They are good at data processing.\u00a0I have explained this at length in my book.\u00a0You need to ask indirectly, in a way that encourages them to tap into their experience. The equivalent\u00a0direct question should be something like:\nTell us about how you, or people close to you, use a DIY approach to staying healthy or caring for each other.\nThis immediately puts the person into a citizen expert mode. They have already attacked a problem. This will be highly specific (\"a visually impaired electronic engineering student\u00a0needed a way to design electrical circuits, so we did XYZ\"). The system level knowledge will be extracted, later, by using ethnography to figure out what concepts, practices, culture etc.\u00a0connect the different stories.\u00a0\nWe are ready to assist you writing challenges.\u00a0\n","comment_id":"23451","post_id":"6474","user_id":"34","parent_comment_id":"23354","creation_date":"Thursday, June 30, 2016 - 12:54","group_id":"5954"}},{"node":{"title":"How to formulate a challenge","content":"\nIn our experience, addressing communities works best when you ask them to share stories: experiential data. Asking for opinions or points of view is a bad idea. You get low quality information: half-baked abstractions, ideology, prejudice... we all are most interesting when we share things we have experienced directly. Experience is\u00a0rich in content and deeply embedded in context. Looking at similar experiences (for example: being hospitalized) from many different points of view drives the \"collective\" in collective intelligence: the different experiences will combine into a community-validated point of view (for example, it becomes easy to recognize a single experience as an outlier if everyone else had a different experience on something).\u00a0\nConsider the following question, taken by @Rossana Torri above:\u00a0\nWhat could be the added value of adopting a \u201cmaker\/fablab\u201d approach to \u201creframe\u201d care systems pushing this kind of tools\/skills\/places into \u201ccommunity-driven\u201d care systems?\nThis is not the kind of question you can directly ask a community. People will immediately go into\u00a0wishful thinking mode: \"we should..\" (\"bisognerebbe...\") and design irrealistic and broken systems that no one can implement. Individual citizens are not especially\u00a0good at systems design. They are good at data processing.\u00a0I have explained this at length in my book.\u00a0You need to ask indirectly, in a way that encourages them to tap into their experience. The equivalent\u00a0direct question should be something like:\nTell us about how you, or people close to you, use a DIY approach to staying healthy or caring for each other.\nThis immediately puts the person into a citizen expert mode. They have already attacked a problem. This will be highly specific (\"a visually impaired electronic engineering student\u00a0needed a way to design electrical circuits, so we did XYZ\"). The system level knowledge will be extracted, later, by using ethnography to figure out what concepts, practices, culture etc.\u00a0connect the different stories.\u00a0\nWe are ready to assist you writing challenges.\u00a0\n","comment_id":"23451","post_id":"6474","user_id":"34","parent_comment_id":"23354","creation_date":"Thursday, June 30, 2016 - 12:54","group_id":"5954"}},{"node":{"title":"Sharing Research ","content":"\n@Lakomaa could you share with us your research \" review of the literature of collective intelligence in care policies\"?\nIt could be very interesting for us to have your research as a general framework, to analyze better the main success\/key factors.\nIn fact, as you read before, we're thinking as City of Milan, with @Rossana,\u00a0to create a challenge that could be also an overview about the role of a public actor as a facilitator of open care projects.\nLet us Know!!\nThanks\nFranca\n","comment_id":"23446","post_id":"6474","user_id":"8807","parent_comment_id":"0","creation_date":"Wednesday, June 29, 2016 - 17:54","group_id":"5954"}},{"node":{"title":"Sharing Research ","content":"\n@Lakomaa could you share with us your research \" review of the literature of collective intelligence in care policies\"?\nIt could be very interesting for us to have your research as a general framework, to analyze better the main success\/key factors.\nIn fact, as you read before, we're thinking as City of Milan, with @Rossana,\u00a0to create a challenge that could be also an overview about the role of a public actor as a facilitator of open care projects.\nLet us Know!!\nThanks\nFranca\n","comment_id":"23446","post_id":"6474","user_id":"8807","parent_comment_id":"0","creation_date":"Wednesday, June 29, 2016 - 17:54","group_id":"5954"}},{"node":{"title":"Completely agree with you, Rossana!","content":"\nFollowing this argument, the \u201cartefacts\/services\/devices\u201d that WeMake will prototype at the end of the co-design sessions are not the final result of the process. In my mind final results (to be evaluated) are related to the questions listed above.\n@Rossana Torri so the way I see it is that we can:\n\u00a01) trust to get answers to these questions when the ethno\/ network analysis is done - based on the stories of care that already mention intersections with regulatory\u00a0systems:\nExamples \"You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.\" (Prinzessinnengarten, Berlin). Or\u00a0\u200bworking on a donation basis was my nod to being a non-commercial entity, which (as far as I know) means the clinic is not subject to licensing - similarly to people who volunteer in hospices, addiction recovery centres etc.\u00a0I am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (Acupuncture clinic in Mortdoor, UK)\n2) Launch a Challenge specifically on your question:\u00a0What role for public actors to reframe care systems?\nHave a look at the 4 challenges so far\u00a0and let's work on a new one? It can be a\u00a0description of Welfare di tutti and challenges you have. That would inspire others to open up too. I had a conversation with someone in Milano a few days ago working in healthcare and they were skeptical of sharing issues online because of damaging reputation. Setting a good example would go a loong way and inspire people to be open and constructive!\u00a0\nOnce the brief intro story is online, we can join forces to reach out specifically to administrations. You could run an internal process in which you ask people to send theirs by email and we upload them in accounts created with their emails and a username they choose. This way you don't ask them to come online from the beginning and come across a scary or weird platform?\u00a0\nLet me know, I made the same offer to WeMake team a while ago but no brief... I also asked everyone in the team to share their personal stories of care and use them for engagement instead of linking to opencare.cc or generic pages..\u00a0Basically if we want conversations around something we need to start them and set the example.\u00a0\nSorry for the rant :-)\n","comment_id":"23443","post_id":"6474","user_id":"32","parent_comment_id":"23354","creation_date":"Wednesday, June 29, 2016 - 13:59","group_id":"5954"}},{"node":{"title":"Completely agree with you, Rossana!","content":"\nFollowing this argument, the \u201cartefacts\/services\/devices\u201d that WeMake will prototype at the end of the co-design sessions are not the final result of the process. In my mind final results (to be evaluated) are related to the questions listed above.\n@Rossana Torri so the way I see it is that we can:\n\u00a01) trust to get answers to these questions when the ethno\/ network analysis is done - based on the stories of care that already mention intersections with regulatory\u00a0systems:\nExamples \"You hear a lot about precarious funding, internal or outside conflicts, political and economic pressure, multitasking, impossible workloads, competition between projects. At the same time, dealing with complex and often rigid political and social institutions, community activists have to become self-trained experts in finances, public relations, lobbying, community-organizing etc. But these fights are long and complex and the institutions and their procedures require a patience that easily outlive the time, the physical and mental resources individuals and grassroots initiatives are able to mobilize.\" (Prinzessinnengarten, Berlin). Or\u00a0\u200bworking on a donation basis was my nod to being a non-commercial entity, which (as far as I know) means the clinic is not subject to licensing - similarly to people who volunteer in hospices, addiction recovery centres etc.\u00a0I am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (Acupuncture clinic in Mortdoor, UK)\n2) Launch a Challenge specifically on your question:\u00a0What role for public actors to reframe care systems?\nHave a look at the 4 challenges so far\u00a0and let's work on a new one? It can be a\u00a0description of Welfare di tutti and challenges you have. That would inspire others to open up too. I had a conversation with someone in Milano a few days ago working in healthcare and they were skeptical of sharing issues online because of damaging reputation. Setting a good example would go a loong way and inspire people to be open and constructive!\u00a0\nOnce the brief intro story is online, we can join forces to reach out specifically to administrations. You could run an internal process in which you ask people to send theirs by email and we upload them in accounts created with their emails and a username they choose. This way you don't ask them to come online from the beginning and come across a scary or weird platform?\u00a0\nLet me know, I made the same offer to WeMake team a while ago but no brief... I also asked everyone in the team to share their personal stories of care and use them for engagement instead of linking to opencare.cc or generic pages..\u00a0Basically if we want conversations around something we need to start them and set the example.\u00a0\nSorry for the rant :-)\n","comment_id":"23443","post_id":"6474","user_id":"32","parent_comment_id":"23354","creation_date":"Wednesday, June 29, 2016 - 13:59","group_id":"5954"}},{"node":{"title":"Two more stories of \"evasive entrepreneurship\" ","content":"\n@Tino_Sanandaji great work, this framework is starting to inform a lot the way we think of projects coming in. Two more examples that you might want to dig deeper into:\n1\/ Cytostatic network in 2012-2013 in\u00a0Romania : community led organised efforts to\u00a0bring\u00a0patients unavailable drug treatments and transport them across the borders\n2\/ An\u00a0acupuncture clinic in Dartmoor UK built as a charity \"working on a donation basis was my nod to being a non-commercial entity, which (as far as I know) means the clinic is not subject to licensing - similarly to people who volunteer in hospices, addiction recovery centres etc.\" (steelweaver)\n","comment_id":"23441","post_id":"6484","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, June 29, 2016 - 10:39","group_id":"0"}},{"node":{"title":"Hi Alberto, thank you for the comment","content":"\nHi Alberto, thank you for your comment!\nThe post on FB didn't mention anything, just the travel question. But I saw it was a share from Vlad Voiculescu, so I understood in a second, even if the article that I read in november 2012 did not state his\u00a0real name. But it was really not hard to connect the dots.\nSo in that evening we spoke for almost one hour on the phone :) , then we met and I\u00a0took the medcines, that was the first encounter so to speak.\n\u00a0Basically, Vlad coordonated the whole thing, he bought the medicines at first, then he found a lot people willing to help with buying, from different cities in Europe and not only.\nSometimes Valeriu would pick up people from the airport, sometimes just meet them in Bucharest and took the medicines to the ones in need.\nI don't know how it was for other cities, but there the distances are smaller and I guess people sorted it out in a similar way.\nVlad also made a website: medicamente-lipsa.ro. People could acces it and find the missing drugs and the means to transport them.\n\u00a0Not least, a movie was made after the investigation in Hotnews (the website where I read the story in 2012)\nhttp:\/\/www.hbo.ro\/movie\/reteaua_-79271\nYou can see it here until september for free\u00a0http:\/\/www.hbogo.ro\/content\/the-network-1053692950\n\u00a0:)\nI hope this helps!\n\u00a0\n","comment_id":"23414","post_id":"6499","user_id":"8842","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 15:14","group_id":"0"}},{"node":{"title":"Documentation - 2nd Consortium Meeting","content":"\n@zoescope just saw your message. See in the Open Care big team folder\u00a0-> a\u00a0documentation\u00a0folder\u00a0with all notes and materials\u00a0from Stockholm.\n","comment_id":"23436","post_id":"6474","user_id":"32","parent_comment_id":"23367","creation_date":"Tuesday, June 28, 2016 - 15:08","group_id":"5954"}},{"node":{"title":"Documentation - 2nd Consortium Meeting","content":"\n@zoescope just saw your message. See in the Open Care big team folder\u00a0-> a\u00a0documentation\u00a0folder\u00a0with all notes and materials\u00a0from Stockholm.\n","comment_id":"23436","post_id":"6474","user_id":"32","parent_comment_id":"23367","creation_date":"Tuesday, June 28, 2016 - 15:08","group_id":"5954"}},{"node":{"title":"You were right: clinical involvement most interesting","content":"\nThanks for the links @Rune, I'm super curious to read the story. As I was reading the translated story of Marco the thing I kept asking myself is : but how do doctors run pre-evaluations and\u00a0clinical trials for a hacked neuroprosthesis? The best place to upload the story, as I was saying, is going to opencare.cc -> Share your Story.\u00a0\n\n\u00a0As for the whole\u00a0of opencare on this\u00a0site, to understand how it is designed I recommend reading first our Guide for OpenCare online community.\u00a0Just a quick issue on the naming:\u00a0OpenCare is the official name of the EU funded project that we are committed to run as per the proposal. While Op3nCare is also pretty much the same as you will read in the guide,\u00a0designating the community conversations, the name and materials with this \"3\"\u00a0spelling have\u00a0the advantage of allowing more freedom - for example some participants are not from the European Union per se and may be inhibited if they see \"EU research project\" all over the website, so having an alternative brand umbrella can help. If you wish, it's a hack to keep the space\u00a0open.\n\nFor more technical design issues, I\u00a0was saying that your user story, bug reporting and suggestions are welcome in the\u00a0Technical development group. Please bear with the developers as they have a long list of things to fix still\u00a0:-)\n","comment_id":"23435","post_id":"6439","user_id":"32","parent_comment_id":"23416","creation_date":"Tuesday, June 28, 2016 - 14:58","group_id":"0"}},{"node":{"title":"Hey @Noemi, this is just","content":"\nHey @Noemi, this is just something cultural that people have always been doing in\u00a0Morocco, it's about going out to catch the cool breeze after a hot summer day and of couse cook together...however there has been a change in the policy in the last couple of years, and it is\u00a0not allowed to cook in public parks any more even though they use\u00a0a traditional\u00a0portable clay pot for coal\/making fire and there is no hasard in cooking open air in such way...\nWhen people go to the countryside for weekends\/holidays, they always take the clay pots to cook their own food in the nature...even though there are restaurants available everywhere.\u00a0\n","comment_id":"23434","post_id":"6431","user_id":"6028","parent_comment_id":"23407","creation_date":"Tuesday, June 28, 2016 - 14:17","group_id":"0"}},{"node":{"title":"Also: Mazi Mas in London","content":"\nJust stumbled upon this\u00a0social enterprise creating community and business\u00a0opportunities for migrant women chefs - especially through popup kitchens.\nMazi Mas means \"with us\" in Greek. \"In the kitchen we speak the same language\" they say.. A beautiful presentation video is here:\u00a0http:\/\/www.mazimas.co.uk\/our-story\/\u00a0\n","comment_id":"23433","post_id":"6454","user_id":"32","parent_comment_id":"23229","creation_date":"Tuesday, June 28, 2016 - 13:22","group_id":"0"}},{"node":{"title":"So much for evasive entrepreneurship! ","content":"\nWow. Very, very interesting. Evasive, right @Lakomaa ? :-)\n","comment_id":"23429","post_id":"6499","user_id":"34","parent_comment_id":"23427","creation_date":"Tuesday, June 28, 2016 - 12:47","group_id":"0"}},{"node":{"title":"In EU you can only transport your own medicine across borders","content":"\nAs far as I know the reason why you wouldn't see explicit calls for drug transports is because legally you're not allowed to transport but your own. So this is a grey area -people needed to say it's their own if asked at the airport or borders, although technically they couldn't have been arrested on such grounds.. after all they weren't commercializing anything.\u00a0Even if the s*** hit the fan,\u00a0no one could publicly dispute this way of getting hold of medicine which was supposed to be provided by the system\u00a0and covered by the medical insurance!\u00a0For several years before, Romanians would be procuring citostatics from nearby countries anyway on their own expenses.\u00a0This is merely a more efficient and structured way of doing the same.\u00a0\nStill, the network was semi-legal, meaning it operated under no clear incidence of laws. It's\u00a0why I remember reading about\u00a0Vlad in various pseudonyms when the story broke in the media. Similarly, in the movie\u00a0his face never shows.\u00a0\nFrom looking at the website, it seems the network worked based on collecting forms filled in by patients\/family with requests for medicine - it's not clear though how much of the\u00a0matchmaking was aided by the technology and how much\u00a0was done manually, through Vlad and his network. Anyhow, most people who were part of it didn't know each other IRL\u00a0- like Vlad and Valeriu, who were key nodes in the network!\n@Sabina U, lovely to meet you virtually, and hopefully in person soon!\n","comment_id":"23427","post_id":"6499","user_id":"32","parent_comment_id":"23414","creation_date":"Tuesday, June 28, 2016 - 12:31","group_id":"0"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"438"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"438"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"438"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"438"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"5954"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"5954"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"5954"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"5954"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"4260"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"4260"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"4260"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"4260"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"366"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"366"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"366"}},{"node":{"title":"Any community here?","content":"\nI would be curious to know if Bengt works alone in his lab, or if he is embedded in a community of like-minded people. Of course, people in the open source movement are by\u00a0definition relying on communities to make their tools, but my hunch is that there is more community going on here. There's probably a (still tiny) OpenDrop community, that could be as small as 2-3 people (still a huge difference from working alone; and even the quorum sensing stuff is made on the Openwetware\u00a0wiki, which has\u00a010 contributors.\u00a0\nDid Bengt tell you anything about this?\n","comment_id":"23426","post_id":"6377","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, June 28, 2016 - 12:22","group_id":"366"}},{"node":{"title":"Casestory-newcomer to OpenCare","content":"\nHi Noemi, it was great talking to you using the online meeting room. It realy gave some insight to the possibilities for 'tele care'.\nAs I told you we are working on a\u00a0solution for people living with spinal cord injury (http:\/\/mecfes.wikispaces.com\/)\u00a0 and I'd like to contribute with a casestory (like\u00a0issues on transferring the technology into practical\/clinical use). \u00a0\nI found out that our \u00a0project resonates with the OpenCare project by sharing a similar vision (http:\/\/mecfes.wikispaces.com\/Mark) \u00a0vs. the story of Franko\/Hacker comunity-driven care in the EU proposal.\nHowever there are some issues with the OpenCare (or is it Op3nCare?) site which I'd like to discuss or understand better. \u00a0Would it be the proper place to proceed in this discussion or is there a more appropriate\/\u00a0preferred way?\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"23416","post_id":"6439","user_id":"8837","parent_comment_id":"0","creation_date":"Monday, June 27, 2016 - 18:25","group_id":"0"}},{"node":{"title":"It may be of interest to Rune","content":"\nHi @Rune, this is the story the Milano team are working on, just in case you want to ask anything or keep in touch with developments.\n","comment_id":"23411","post_id":"6439","user_id":"32","parent_comment_id":"0","creation_date":"Monday, June 27, 2016 - 17:09","group_id":"0"}},{"node":{"title":"Great story","content":"\nWow, @Sabina U , what a story. Thanks for sharing.\u00a0\nSo, it starts with you seeing an update on Facebook. Did your friend mention that they needed someone to take medicines into Bucharest? Or just \"somone who travels from Vienna\"?\nThen what? How did you in the Network coordinate? It looks like Valeriu was the one in charge of the final distribution; but how could a person in need of help access the Network? Was there a kind of coordinator (maybe Vlad)?\nSorry to ask so many questions, but this is just too interesting.\n","comment_id":"23408","post_id":"6499","user_id":"34","parent_comment_id":"0","creation_date":"Monday, June 27, 2016 - 14:07","group_id":"0"}},{"node":{"title":"Do you see diversity there?","content":"\nHeya, is this about the culture of going out or more of a policy or\u00a0project for bringing people together?\n","comment_id":"23407","post_id":"6431","user_id":"32","parent_comment_id":"23401","creation_date":"Monday, June 27, 2016 - 13:36","group_id":"0"}},{"node":{"title":"I can only emphasize the","content":"\nI can only emphasize the importance of shared cooking in communities, it's an essential part of socializing in Marrakech, Morocco\u00a0where people gather in parks in the evenings and bring their tagine out to cook\u00a0and mingle while enjoying the cool breeze from the Atlas mountains...\n","comment_id":"23401","post_id":"6431","user_id":"6028","parent_comment_id":"0","creation_date":"Monday, June 27, 2016 - 11:15","group_id":"0"}},{"node":{"title":"This reminds me of a project","content":"\nThis reminds me of a project The Invisible Labs\/Chronically Driven http:\/\/theinvisiblelabs.com\/news\/ and https:\/\/medium.com\/chronically-driven. A different take on various health issues, and how they make people's lives... better.\u00a0\n","comment_id":"23368","post_id":"6442","user_id":"678","parent_comment_id":"0","creation_date":"Thursday, June 23, 2016 - 17:15","group_id":"0"}},{"node":{"title":"There was a document for minutes","content":"\n@Noemi Could you share the link?\nthanks!\nZoe\n","comment_id":"23367","post_id":"6474","user_id":"3855","parent_comment_id":"0","creation_date":"Thursday, June 23, 2016 - 14:29","group_id":"5954"}},{"node":{"title":"There was a document for minutes","content":"\n@Noemi Could you share the link?\nthanks!\nZoe\n","comment_id":"23367","post_id":"6474","user_id":"3855","parent_comment_id":"0","creation_date":"Thursday, June 23, 2016 - 14:29","group_id":"5954"}},{"node":{"title":"Studies showing link between creativity and emotional precarity","content":"\n@Pauline @Alex_Levene let me know if you came across scientific studies establishing that link? I couldnt find any..\n","comment_id":"23357","post_id":"6388","user_id":"32","parent_comment_id":"23137","creation_date":"Thursday, June 23, 2016 - 10:33","group_id":"0"}},{"node":{"title":"Open + Care with Ezio Manzini and online conversation","content":"\nPersonally, but also from the point of view of the institution which I represent in the Opencare consortium (City of Milano), I feel I have not yet found the right \"levers\" to push people on the platform.\u00a0 I'm also aware that for this reason we (City of Milan) risk to lose the opportunity to be effective in enriching the online conversation.\nWe tried to do that, through reporting on offline activities, but maybe this is not the best way (too indirect and \"scholastic\").\nThe fellowships could work well, but maybe we need also different tools, which are capable to affect the quantity and quality of the interactions.\nAs we said this morning, one possibility could be to formulate more precise questions, focusing on different \"axes\"\/actions of OpenCare project. This could maybe help us to \u201cattract\u201d people interested\/competent in some specific area of our research\/action and catalyse interactions and mutual learning. Does it make sense? Did you take any decision at the end of the workshop?\nEach partner has its own perspective and one of the challenging aspects of the project is \u201cmultiplicity in unit\u201d, as Alberto wrote some days ago. For this I am trying to imagine how we could better position the perspective of each of us within the common frame of OpenCare.\nIf I look at the \"local activities\" we have developed in Milan during the previous month I would start from these points:\n- What could be the added value of adopting a \u201cmaker\/fablab\u201d approach to \u201creframe\u201d care systems pushing this kind of tools\/skills\/places into \u201ccommunity-driven\u201d care systems?\n- Which role can play the public actor?\n- Which are the favorable conditions (context, type of communities, types of problem\/demand of care\u2026) in which this approach can be helpful and generative of innovation?\n- Other\u2026.\nIn my opinion, and adopting the perspective of Ezio Manzini (networks of care), the \u201cfablab concept\/approach\u201d that we are following in the \u201cmilanese pilot\u201d (which intersects care; skills\/education (learning by doing); sustainable development, and surely other things\u2026) could be one of the strategic assets within a broader ecosystem where more actors are included and play different roles (citizens as care recipients and care-givers, administrations, public health institutions and professionals, no profit organization and so on\u2026).\nFollowing this argument, the \u201cartefacts\/services\/devices\u201d that WeMake will prototype at the end of the co-design sessions are not the final result of the process. In my mind final results (to be evaluated) are related to the questions listed above.\n\u201cCommunities\u201d (and here I have in mind: something that is not \u201cfamilies\u201d, not individuals, but people linked by a common interest\/purpose; so I would say \"elective comunities\") are the propulsive force and nodes of the ecosystem. People act together as they are moved by a common challenge (not \u201cneed\u201d if you don\u2019t like the term) which is not answered by traditional\/closed systems.\nPlatforms (not only digital, but maybe also physical) could help to organize and improve the ecosystem (I\u2019ll come back to this point using the example of \u201cWelfare di tutti\u201d in Milan).\n\u00a0\nThanks to Ezio and to all of you for the challenging discussion!\n...and sorry for the amount of errors that you will find in this text.\nI'm going from one plane to another and I have no time for check :-)\nRossana\n","comment_id":"23354","post_id":"6474","user_id":"8156","parent_comment_id":"0","creation_date":"Wednesday, June 22, 2016 - 18:58","group_id":"5954"}},{"node":{"title":"Open + Care with Ezio Manzini and online conversation","content":"\nPersonally, but also from the point of view of the institution which I represent in the Opencare consortium (City of Milano), I feel I have not yet found the right \"levers\" to push people on the platform.\u00a0 I'm also aware that for this reason we (City of Milan) risk to lose the opportunity to be effective in enriching the online conversation.\nWe tried to do that, through reporting on offline activities, but maybe this is not the best way (too indirect and \"scholastic\").\nThe fellowships could work well, but maybe we need also different tools, which are capable to affect the quantity and quality of the interactions.\nAs we said this morning, one possibility could be to formulate more precise questions, focusing on different \"axes\"\/actions of OpenCare project. This could maybe help us to \u201cattract\u201d people interested\/competent in some specific area of our research\/action and catalyse interactions and mutual learning. Does it make sense? Did you take any decision at the end of the workshop?\nEach partner has its own perspective and one of the challenging aspects of the project is \u201cmultiplicity in unit\u201d, as Alberto wrote some days ago. For this I am trying to imagine how we could better position the perspective of each of us within the common frame of OpenCare.\nIf I look at the \"local activities\" we have developed in Milan during the previous month I would start from these points:\n- What could be the added value of adopting a \u201cmaker\/fablab\u201d approach to \u201creframe\u201d care systems pushing this kind of tools\/skills\/places into \u201ccommunity-driven\u201d care systems?\n- Which role can play the public actor?\n- Which are the favorable conditions (context, type of communities, types of problem\/demand of care\u2026) in which this approach can be helpful and generative of innovation?\n- Other\u2026.\nIn my opinion, and adopting the perspective of Ezio Manzini (networks of care), the \u201cfablab concept\/approach\u201d that we are following in the \u201cmilanese pilot\u201d (which intersects care; skills\/education (learning by doing); sustainable development, and surely other things\u2026) could be one of the strategic assets within a broader ecosystem where more actors are included and play different roles (citizens as care recipients and care-givers, administrations, public health institutions and professionals, no profit organization and so on\u2026).\nFollowing this argument, the \u201cartefacts\/services\/devices\u201d that WeMake will prototype at the end of the co-design sessions are not the final result of the process. In my mind final results (to be evaluated) are related to the questions listed above.\n\u201cCommunities\u201d (and here I have in mind: something that is not \u201cfamilies\u201d, not individuals, but people linked by a common interest\/purpose; so I would say \"elective comunities\") are the propulsive force and nodes of the ecosystem. People act together as they are moved by a common challenge (not \u201cneed\u201d if you don\u2019t like the term) which is not answered by traditional\/closed systems.\nPlatforms (not only digital, but maybe also physical) could help to organize and improve the ecosystem (I\u2019ll come back to this point using the example of \u201cWelfare di tutti\u201d in Milan).\n\u00a0\nThanks to Ezio and to all of you for the challenging discussion!\n...and sorry for the amount of errors that you will find in this text.\nI'm going from one plane to another and I have no time for check :-)\nRossana\n","comment_id":"23354","post_id":"6474","user_id":"8156","parent_comment_id":"0","creation_date":"Wednesday, June 22, 2016 - 18:58","group_id":"5954"}},{"node":{"title":"Yes for customized playgrounds!","content":"\nGreat project, thank you for sharing. It's beyond me to see how the city can ever give up on ideas which work or generate enthusiasm.\nYou'd think the smaller the city, the easier to make this kind of change and keep it going. I see how consistent\u00a0my hometown is becoming when it comes to\u00a0legitimizing its caretakers and picking up on good ideas (gave the example of the hammocks in the park which became legit).\n@ChristineOehme I don't know if you've teamed up with @Moriel who is also doing work on disability, but she has been asking \n\"Is it the disability itself, that disables people? Or is it the attitude and perception of the society and a non-barrier-free environment which actually disables?\"\nFrom your post this question is less important because at the end of the day, the problem is how to\u00a0enable\u00a0Fabian and others\u00a0to enjoy play like any kid should. So while disability is indeed a gradient (we are all disabled at something or at some point!) and needs a change in perception, it is actions (building inclusive\u00a0playgrounds) that\u00a0really hit the nail on the head. At least this is how I see it.\n","comment_id":"23345","post_id":"6479","user_id":"32","parent_comment_id":"23329","creation_date":"Tuesday, June 21, 2016 - 09:01","group_id":"0"}},{"node":{"title":"Risks of overdetermination","content":"\nI follow your work from a distance with great interest.\u00a0\nI think you will soon run into an issue of determination. What I mean by this is: the simplest the \"device\", the more the ways in which it can be used, the broader the range of abilities it accommodates. Take, for example, plasticine:\n\nYou can do all sorts of stuff with it, from just playfully messing around to veritable art. So, in a way it is perfectly inclusive. But if\u00a0you ever tried to play with plasticine with someone else, you know that disabilities are by no means the only important differentiator: children of different ages, for example, will want to do different things with plasticine. Everyone likes it (it is accessible for everyone), but it does not necessarily bring people together. It appears that accessibility does not lead per se to socialization.\nYour response might be to design in such a way as to restrict the ways to interact with the artefact. For example, there are not many things you can do with\u00a0a merry-go-round (though children do try!). But then, you risk overdetermining the interaction, making your work uninteresting for everyone!\u00a0\nHmm, interesting problem! Looking forward to your next moves.\n","comment_id":"23338","post_id":"6481","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, June 19, 2016 - 21:41","group_id":"0"}},{"node":{"title":"Glitch...","content":"\nAlso ping:\n@Massimo\n@Rossana Torri\n@melancon\n","comment_id":"23331","post_id":"6474","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, June 18, 2016 - 18:24","group_id":"5954"}},{"node":{"title":"Glitch...","content":"\nAlso ping:\n@Massimo\n@Rossana Torri\n@melancon\n","comment_id":"23331","post_id":"6474","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, June 18, 2016 - 18:24","group_id":"5954"}},{"node":{"title":"Super-interesting","content":"\n\"Inclusion and accessibility are two different topics\/areas\". This is a really interesting intuition.\nBut... you forgot the picture! You can edit the challenge response to add it.\u00a0\n","comment_id":"23330","post_id":"6482","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, June 18, 2016 - 12:08","group_id":"0"}},{"node":{"title":"Makers, again","content":"Wow, @ChristineOehme, this is really valuable material. Great work.\u00a0\n\nThe end of your post suggests Fabian (and others \u2013 many others, in fact) could benefit from customized playgrounds. This is not so difficult, as there are corners of the makers community that are both interested in it and able to do it. Controprogetto in Milano, for example, have at least once involved locals in a city called Taranto to design and build a whole (temporary) playground in the city center. The video is super-inspiring!\u00a0\n\n\n\nThe final 40 seconds or so of the video are an act of accusation to the municipality, which did not follow up on the work done and let the participatory work rot away. I guess this is another case for\u00a0stewardship, a favourite topic in Edgeryders.\u00a0\n","comment_id":"23329","post_id":"6479","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, June 18, 2016 - 11:35","group_id":"0"}},{"node":{"title":"Also, brainball (later mindball)","content":"\n\nYears ago I came across this hilarious and frustrating game:\n\"Brainball is a two-player game where relaxation is counterbalanced with the desire to win. The little ball on the game's table is telekinetically controlled through the use of each player's brainwaves. Both a calm state and a stressed state have a direct influence on the match. The player who is most passive can watch the ball roll away towards the opponent's goal and a prospective win.\"\nSlate wrote an article about it a while back: Bowling with Brainwaves\n","comment_id":"23328","post_id":"6261","user_id":"45","parent_comment_id":"0","creation_date":"Friday, June 17, 2016 - 22:11","group_id":"0"}},{"node":{"title":"Apparently doing nothing has become a sport in South Korea","content":"\n\nI came across this article about a competition in South Korea where people do, well, nothing and immediately thought of this conversation thread...\n\"Since the first competition was held two years ago, it's evolved into a full-on pageant with a panel of judges and a set of strict rules\u2014no phones, no talking, no checking your watch, no dozing off. WoopsYang said more than 2,000 people signed up for the 70 contestant slots this year, and she had to hold qualifying rounds to select the best candidates.\"\nFull article available here: http:\/\/www.vice.com\/read\/doing-nothing-has-become-a-sport-in-south-korea\n","comment_id":"23327","post_id":"6261","user_id":"45","parent_comment_id":"0","creation_date":"Friday, June 17, 2016 - 22:05","group_id":"0"}},{"node":{"title":"A similar approach in Italy","content":"\nThe city of Lecce launched a hackathon with students, hackers and wheelchair-bound individuals to collaboratively\u00a0map barriers to individuals in town (story, in Italian).\n\nThe approach is slightly different from that of Wheelmap. Wheelmap assigns a tag to a single point:\n\"wheelchair\" = \"no\"\nWhereas they actually mapped objects using OSM Tracker, for example traffic light poles, and added codes to them according to the impact they had on mobility. So, accessibility relates to objects (\"nodes\" or \"ways\") in OpenStreetMap rather than to coordinates.\u00a0The results are stored as a layer\u00a0in a CSV file on the city's open data portal and linked to OpenStreetMap via Umap. Maps are generated by dynamically superimposing OSM and the accessibility layer:\u00a0http:\/\/umap.openstreetmap.fr\/it\/map\/lecce-luoghi-accessibili-per-disabilita-varie-e-di_20512#15\/40.3509\/18.1826\u00a0\nThis was done by the wonderful @piersoft and fellow citizens.\u00a0\u00a0\n","comment_id":"23323","post_id":"6438","user_id":"34","parent_comment_id":"0","creation_date":"Friday, June 17, 2016 - 16:43","group_id":"0"}},{"node":{"title":"WheelMap by \"Die Sozialhelden\"","content":"\nYou can find the map on\u00a0www.wheelmap.org.\nThe wheelmap is a map for wheelchair accessible places. You can find places, evaluate\u00a0places you have already been to, or inscribe places. The map shall help people in wheelchairs or with other mobility limitations to plan their day easier.\nWhen I met Raul Krauthausen for an interview, we looked for a place on the wheelchair, that fits us both: based on the location and the accessibility.\n\u00a0\n","comment_id":"23319","post_id":"6438","user_id":"8595","parent_comment_id":"0","creation_date":"Friday, June 17, 2016 - 14:45","group_id":"0"}},{"node":{"title":"in ","content":"\n@Costantino available and present.\u00a0\n@melancon\n- what is the deadline to submit our challange to the participants?\u00a0\n- can you link a tipical call \/ challenge ?\u00a0\n","comment_id":"23313","post_id":"6041","user_id":"2604","parent_comment_id":"0","creation_date":"Thursday, June 16, 2016 - 20:20","group_id":"5954"}},{"node":{"title":"in ","content":"\n@Costantino available and present.\u00a0\n@melancon\n- what is the deadline to submit our challange to the participants?\u00a0\n- can you link a tipical call \/ challenge ?\u00a0\n","comment_id":"23313","post_id":"6041","user_id":"2604","parent_comment_id":"0","creation_date":"Thursday, June 16, 2016 - 20:20","group_id":"5954"}},{"node":{"title":"What I like about some way of organising or governance..","content":"\n.. (call it what you want)\u00a0is that it makes it easier to see how\/ if it would\u00a0translate to\u00a0other groups or settings. What we don't know about the ER style of\u00a0do-ocracy yet is how it would work in a real life, physical place that is not an infinite playground or resource after all - that's why I asked @marcoclausen\u00a0about ruling over\u00a0the vegetable beds.\nShouldn't a community that is healthy be better at caring for its members than one where\u00a0conflicts take over? (with the shades of grey in between of couse - happiness and conflict are no absolutes).\u00a0If so, then learning to minimise\u00a0conflict or other kinds of distress\u00a0should\u00a0make it easier for activists to stay well.\u00a0On learning:\u00a0we're all doing that, but no matter how much you learn, if you can't keep the lights on with people staying well, then it's only a matter of time..\u00a0As an example, a paintbrush factory-turned-contemporary art space where I'm from in Cluj saw a huge blow\u00a0after 7 years - one of the splitting factions\u00a0has\u00a0trademarked the brand with EU's\u00a0OHIM, and\u00a0anyone in the art community is now somewhat part\u00a0of that conflict. The brand is affected, reputations too, and of course the influence achieved over the years and ability to attract funding might be too.. I'm sure there's many stories like that out there. Anyway, just a thought. thanks again for the piece :-)\n","comment_id":"23308","post_id":"6473","user_id":"32","parent_comment_id":"23302","creation_date":"Thursday, June 16, 2016 - 17:56","group_id":"0"}},{"node":{"title":"And my favourite OpenCare story is...","content":"\nI have decided to put here my \"homework\".\u00a0\nMy favourite OpenCare story is still the first one: Greece's shadow health care system. I see a strong similiarity with the cytostatic network story in Romania, though I know less of it.\u00a0\nNo point discussing why these are care stories, that's self-evident. It makes more sense to discuss why they are open.\n\nThey are open in the trivial sense\u00a0that they are not constructed on intellectual property rights.\nThey are open in the sense that people can freely decide to step in and become a part of it. There is not even a real vetting process: the Helliniko clinic works by asking people to volunteer for a group, so that which individuals are paired with which group is driven by self selection. As for the cytostatic network, I guess that came down to people phoning up and saying \"hey, I'm flying to Bucharest next week, do you want me to carry anything?\". Implication: the people who are most likely to step in are the people who themselves need to use the system. The community serves itself.\nThey are open in the sense that coordination and management\u00a0processes are relatively fluid. People coordinate using minimal tech and whatever works (Google Groups in the case of Helliniko). This is in stark contrast to,\u00a0for example, Airbnb or Uber, where every user and every provider interact in exactly the same ways, and these ways are encoded in the affordances of the respective platforms.\nMaybe they are also open in the sense that the range of what gets done (or doesn't) is not written in stone, but emerges as a function of opportunity, motivation of people on the ground and perceived need. For example, Helliniko does not do the same things a hospital does: it does not do surgery, and it has no beds \u2013 it does less than hospitals here, because covering this need would increase complexity by an order of magnitude. Neither does it do first aid, because Greeks have a right to first aid even if they are long-term unemployed. On\u00a0the other hand, Helliniko hands out free pharmaceuticals and even non-medical stuff like baby formula or food for (poor) people with food intolerances. So they do\u00a0more\u00a0than hospitals here.\u00a0\n\nWhen all is said and done,\u00a0everything\u00a0in these stories is constantly renegotiated: the means, the teams, the actions. Except one thing: the people being served. In the Helliniko story, this is the local folks who have lost access to public health care. In the cytostatic network, it's cancer patients and their families, who cannot get hold of certain pharmaceuticals. The service is built around their needs.\u00a0\nFinally: these two stories are exemplar also in the sense that they can use small contibutions, like Wikipedia (as argued here). You can help Helliniko even just putting word out on social media when the clinic needs a certain medicine, or the cytostatic network just by puntting a couple of boxes of medicines into your suitcase when flying to Romania. This does not make them more open, but it does make them better at taking advantage of being open.\u00a0\n","comment_id":"23306","post_id":"6474","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, June 16, 2016 - 15:25","group_id":"5954"}},{"node":{"title":"And my favourite OpenCare story is...","content":"\nI have decided to put here my \"homework\".\u00a0\nMy favourite OpenCare story is still the first one: Greece's shadow health care system. I see a strong similiarity with the cytostatic network story in Romania, though I know less of it.\u00a0\nNo point discussing why these are care stories, that's self-evident. It makes more sense to discuss why they are open.\n\nThey are open in the trivial sense\u00a0that they are not constructed on intellectual property rights.\nThey are open in the sense that people can freely decide to step in and become a part of it. There is not even a real vetting process: the Helliniko clinic works by asking people to volunteer for a group, so that which individuals are paired with which group is driven by self selection. As for the cytostatic network, I guess that came down to people phoning up and saying \"hey, I'm flying to Bucharest next week, do you want me to carry anything?\". Implication: the people who are most likely to step in are the people who themselves need to use the system. The community serves itself.\nThey are open in the sense that coordination and management\u00a0processes are relatively fluid. People coordinate using minimal tech and whatever works (Google Groups in the case of Helliniko). This is in stark contrast to,\u00a0for example, Airbnb or Uber, where every user and every provider interact in exactly the same ways, and these ways are encoded in the affordances of the respective platforms.\nMaybe they are also open in the sense that the range of what gets done (or doesn't) is not written in stone, but emerges as a function of opportunity, motivation of people on the ground and perceived need. For example, Helliniko does not do the same things a hospital does: it does not do surgery, and it has no beds \u2013 it does less than hospitals here, because covering this need would increase complexity by an order of magnitude. Neither does it do first aid, because Greeks have a right to first aid even if they are long-term unemployed. On\u00a0the other hand, Helliniko hands out free pharmaceuticals and even non-medical stuff like baby formula or food for (poor) people with food intolerances. So they do\u00a0more\u00a0than hospitals here.\u00a0\n\nWhen all is said and done,\u00a0everything\u00a0in these stories is constantly renegotiated: the means, the teams, the actions. Except one thing: the people being served. In the Helliniko story, this is the local folks who have lost access to public health care. In the cytostatic network, it's cancer patients and their families, who cannot get hold of certain pharmaceuticals. The service is built around their needs.\u00a0\nFinally: these two stories are exemplar also in the sense that they can use small contibutions, like Wikipedia (as argued here). You can help Helliniko even just putting word out on social media when the clinic needs a certain medicine, or the cytostatic network just by puntting a couple of boxes of medicines into your suitcase when flying to Romania. This does not make them more open, but it does make them better at taking advantage of being open.\u00a0\n","comment_id":"23306","post_id":"6474","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, June 16, 2016 - 15:25","group_id":"5954"}},{"node":{"title":"Difficult compromises","content":"\nAgree on all fronts, @marcoclausen . After three years of do-ocracy in Edgeryders, we are not blind to its flaws. It comes down to the lesser evil, I guess. It kind of works with us, but I would definitely not try to implement it at the nation-state level, at least not without major major revision!\u00a0\nHowever, do-ocracy is itself\u00a0a set of rules. I like to think of it in terms of Protocol, a word that we used a lot when working on the unMonastery:\u00a0https:\/\/edgeryders.eu\/en\/unmonastery\/protocol-01-engineering-human-to-human-interaction-for\nI am familiar with Graber's work, and, like you, I enjoyed it too.\u00a0\n","comment_id":"23302","post_id":"6473","user_id":"34","parent_comment_id":"23299","creation_date":"Thursday, June 16, 2016 - 12:23","group_id":"0"}},{"node":{"title":"Labels and grids, again (and Darwin)","content":"\nIt looks like Raul is\u00a0advocating the removal of special categories (\"labels\") tagging underprivileged people. This means giving up our standard way of seeing the world by categories \u00a0that have administrative and\u00a0legal relevance\u00a0(\"grids\" in the language of James Scott). \u00a0It seems to be a letimotiv in OpenCare.\u00a0\nI do see the potential for lock-in when administrative grids become involved. You get organisations that \"own a problem\": my\u00a0organisation deals\u00a0with blind people, yours\u00a0with teenage pregnancies etc. As long as these categories have currency in the policy document and in the strategies of donors, the organisations serving them will prosper. \u00a0\nWhat I don't see is why label removal should be so hard intellectually. We have something we can replace categories with: frequency distributions. Instead of saying \"we need to accommodate the disabled\" we can say \"3% of humans cannot go up more than one step, and the step needs to be lower than 200 millimeters\". They can be disabled, but also simply old, or exhausted, or drunk. This is irrelevant. What's relevant is that it's just plain stupid to design a building that will not work every time!\u00a0\nThis is the classic Darwinian move.\u00a0Linnean biology tried to characterize a species by characterics: birds have beaks, pelicans have very large beaks, humans walk on two legs... wait, that would mean Raul is not human, since he does not walk. But neither is he a fish, though he presumably can swim. So what do we do? Do we make him his own species?\n\u00a0Darwin said \"look, a species is simply a frequency distribution across certain characteristics. For example, most ants do not have wings, but some (males) do. About 98% (I'm making the number up here) of humans walk on two legs, but a 2% does not.\" The frequency distribution captures all the information a designer needs. What's so hard about using it?\n","comment_id":"23301","post_id":"6442","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, June 16, 2016 - 12:15","group_id":"0"}},{"node":{"title":"low-overhead","content":"\nDear Alberto,\nthanks for the reply. i totally understand the wish do not get mixed up with organizational structures. and even though i don't like the word \"governance\" too much, i think for a long term survivale of projects, and also to keep them transparent and open, there should be next to the possibility to do also some general rules and mechanism. i also refer here to the idea of the commons, that are often practically related to very clear rules (including sanctions, and instruments to deal with conflict). I think Jo Freemans \"the tyranny of structurelessness\" (http:\/\/www.jofreeman.com\/joreen\/tyranny.htm) is still - after 40 years -\u00a0 relevant, and i also enjoyed reading David Graebers \"Utopia of Rules\" where he also refers to Freeman.\n\u00a0\n\u00a0\n","comment_id":"23299","post_id":"6473","user_id":"8818","parent_comment_id":"0","creation_date":"Thursday, June 16, 2016 - 12:01","group_id":"0"}},{"node":{"title":"event: date & tech","content":"\nHi @Noemi and thank you for your input.\nAt the moment i think Live hangout might do fine, or...do you have any suggestion?\nAbout the date...could be by the end of the month, like monday 27 for instance..Next week i will schedule it better.\nHope to get feedback and some interest about these issues..\n","comment_id":"23288","post_id":"6422","user_id":"8779","parent_comment_id":"0","creation_date":"Thursday, June 16, 2016 - 06:11","group_id":"0"}},{"node":{"title":"thanks noemi for your","content":"\nthanks noemi for your feedback. it's hard to give advice on the right governance structure and conflict management. in a project like ours it's still an ongoing learning or de-learning process, especially dealing with formal and informal mechanism and forms of communication and decision making.\n\u00a0\n","comment_id":"23287","post_id":"6473","user_id":"8818","parent_comment_id":"23278","creation_date":"Thursday, June 16, 2016 - 00:06","group_id":"0"}},{"node":{"title":"Lots to think about...","content":"\nExcellent piece @marcoclausen\u00a0. It resonates with other stories and opinion I have heard, especially in the context on the unMonastery: many so-called social innovation initiatives (including, er, Edgeryders itself) are constantly at risk of burning out the (relatively)\u00a0few people who pull\u00a0most of the weight.\u00a0\nNoemi above seems to endorse governance as a way to mitigate friction. My point of view is that governance often is an attention sink, and could potentially make burnout worse. This is why we are so interested in do-ocracy as a way of life: it has low overhead.\u00a0\nOn the other hand, I could not agree more on collective learning. Our own version of that is an emphasis on documentation, so that people have a shared, written, searchable and evolving\u00a0knowledge base. I think this is working quite well for us.\u00a0\n","comment_id":"23285","post_id":"6473","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, June 15, 2016 - 16:29","group_id":"0"}},{"node":{"title":"Location and time","content":"\nI'm in and looking forward to it. Added the location in the event text and NB: time is 9 - 11 30 CET.\nOur site timezones don't work.. (for some reason on my screen\u00a0I see 8 00 -10 30 CET).\nSharing here for the meeting purposes some stories for people to read, just in case you don't know how to choose:\n\nOpen Science- and Technologies\nCare by communities: Greece's shadow zero-cash health care system\nCommunity Acupuncture - an ongoing mutation\n\"Coeur d'Or\": collaborative efforts for promotional and preventive cardiovascular care in West-Africa\nHow do different food cultures facilitate care?\nA new chapter in Other People's Story Books\nOn being a self-entrepreneur\nCollaborative care. A new generation of services\nDesign for vulnerability\n\n","comment_id":"23284","post_id":"6474","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, June 15, 2016 - 13:31","group_id":"5954"}},{"node":{"title":"Location and time","content":"\nI'm in and looking forward to it. Added the location in the event text and NB: time is 9 - 11 30 CET.\nOur site timezones don't work.. (for some reason on my screen\u00a0I see 8 00 -10 30 CET).\nSharing here for the meeting purposes some stories for people to read, just in case you don't know how to choose:\n\nOpen Science- and Technologies\nCare by communities: Greece's shadow zero-cash health care system\nCommunity Acupuncture - an ongoing mutation\n\"Coeur d'Or\": collaborative efforts for promotional and preventive cardiovascular care in West-Africa\nHow do different food cultures facilitate care?\nA new chapter in Other People's Story Books\nOn being a self-entrepreneur\nCollaborative care. A new generation of services\nDesign for vulnerability\n\n","comment_id":"23284","post_id":"6474","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, June 15, 2016 - 13:31","group_id":"5954"}},{"node":{"title":"Most down to earth take on disability that I've read.","content":"\n@Moriel what an insightful interview!\nFyi I was surfing the net and saw that Berlin received the Access City award from the EC in 2013 for removing barriers to disability, especially\u00a0in\u00a0urban planning and transportation. Surely public policies don't solve it, as Raul is saying, yet\u00a0there is something about designing for the public space. It's interesting because it's so diverse\u00a0- it's more neutral, and hosts\u00a0encounters of all sorts of people. Just a thought.\n","comment_id":"23280","post_id":"6442","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, June 14, 2016 - 15:59","group_id":"0"}},{"node":{"title":"Let's see who's around for the webinar..","content":"\nPing @markomanka maybe he's interested or\u00a0can connect us to someone?\nAlso, Federico you might want to check if @jdossou80@yahoo.com's project\u00a0of community mobilizing and raising awareness around cardiovascular diseases might be suited to cover at least part of the webinar.\nCount me in for helping prepare\u00a0it. Do you have a preferred tech for event delivery?\u00a0\n","comment_id":"23279","post_id":"6422","user_id":"32","parent_comment_id":"23267","creation_date":"Tuesday, June 14, 2016 - 14:07","group_id":"0"}},{"node":{"title":"\"The bees are happy collecting nectar in the middle of Berlin\"","content":"\nGreat money quote, thank you so much @marcoclausen for sharing this story.\nI'm curious, how did you learn to deal with conflicts as your network expanded so much over the years? Do\u00a0you have a governance structure in place that helps you\u00a0work out solutions\u00a0inside the community: for example if there are differences of opinions between\u00a0gardeners, beekeepers, neighborhood\u00a0conveners,\u00a0the association members and various groups stewarding Prinzessinnengarten. After all, you only have a limited\u00a0number of vegetable beds, right?\n","comment_id":"23278","post_id":"6473","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, June 14, 2016 - 12:01","group_id":"0"}},{"node":{"title":"So are we participating ?","content":"\nWe should settle this during the June meeting.\nI am assuming those who showed interest still do. @Noemi and @Nadia and @Alberto and @Costantino\nWhat we need to decide is\n\nwho of us would give a short presentation of what is opencare (and how\/why it intersects with the hacking event)\nwhat challenge we can submit to participants (something tech-oriented with a WeMake flavor, or one with\u00a0a UBx flavor or both)\n\n","comment_id":"23274","post_id":"6041","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, June 13, 2016 - 13:52","group_id":"5954"}},{"node":{"title":"So are we participating ?","content":"\nWe should settle this during the June meeting.\nI am assuming those who showed interest still do. @Noemi and @Nadia and @Alberto and @Costantino\nWhat we need to decide is\n\nwho of us would give a short presentation of what is opencare (and how\/why it intersects with the hacking event)\nwhat challenge we can submit to participants (something tech-oriented with a WeMake flavor, or one with\u00a0a UBx flavor or both)\n\n","comment_id":"23274","post_id":"6041","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, June 13, 2016 - 13:52","group_id":"5954"}},{"node":{"title":"WEBINAR - e-patients & Health Mobilizations on the Internet","content":"\nI'm seeking contributions, participants and co-organizers for a webinar at the end of the month about discussing on e-patients and online communities on healthcare issues and forms of activism, networking and engagement of patients, citizens, makers, etc.. in research and social shaping of medical and healthcare technology. Anyone interested is welcome in co-designing or sketching the best formula for such a live event!\nThank you\n","comment_id":"23267","post_id":"6422","user_id":"8779","parent_comment_id":"0","creation_date":"Monday, June 13, 2016 - 11:38","group_id":"0"}},{"node":{"title":"Was too early at the time, but maybe shoot for a fellowship?","content":"\nHi Laura,\nI had managed to miss this as we were in deep preparation mode ahead of launching OpenCare. Are you up for trying something else? I have two suggestions to make\n1) Repost the material from the kickstarter campaign in your post above (if you like I can do it for you). This will make it more appealing for an Op3n fellowship\n2) I am just about to start pursuing a number of fundraising avenues including fellowships to support my own experimental work. We can collaborate on this if you like?\n\u00a0\n","comment_id":"23257","post_id":"5718","user_id":"45","parent_comment_id":"0","creation_date":"Friday, June 10, 2016 - 09:58","group_id":"4260"}},{"node":{"title":"Daer @Noemi thank you for","content":"\nDaer @Noemi thank you for your comment, yes it is reallly big problem about visually impaird people here in Armenia, and in general Caucasus reginon, about unemployement statistic\u0589 we have official number\u057d but in Armenian languge...\nhere is\u00a0some source about visually impaied pp\nhttps:\/\/www.armenianow.com\/society\/health\/50049\/armenia_health_blind_eye_specialist\n","comment_id":"23254","post_id":"6421","user_id":"8761","parent_comment_id":"0","creation_date":"Thursday, June 9, 2016 - 14:21","group_id":"0"}},{"node":{"title":"Documenting your design process..","content":"\n.. looks like a very thorough work!\nIt's incredible that none of these people seems to be cooks, and yet they are so knowledgeable about what cooking brings to one's life - and how that's a part of living a good, peaceful life. \u00a0\n\u00a0\n","comment_id":"23250","post_id":"6431","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, June 9, 2016 - 07:48","group_id":"0"}},{"node":{"title":"opencamp","content":"\nHey everyone,\nthanks for your thoughts! The idea of an \"interactive camp\" whithout\u00a0the usual hirachies seems like a very interesting alternative. We are staying in contact now with the people from ROC 21. They are working on new and better structures for refugee camps. Because its important not to separate the different \"problems\" from each other but to organize the camp differently from the very first:\n\"We will realize a dynamic and open space of opportunity, growth and co-creation. Everything will be developed participatively, combining the knowledge and cultural needs of refugees and the local population alike. Activating our diverse network of architects, facilitators, academics, designers and social innovators, we will draft a modern and sustainable set of interven- tions that can be combined according to the given needs.\"\nand as it happens they are trying it right now here in Berlin! we are going to meet next week, I will report! (check them out here:\u00a0http:\/\/www.roc21.net)\nThe idea of using the the knowledge, the creativity that is already in the camp as the source to teach and learn is really nice. But I do get Noemis point that the people in the camps, (which are intended to be short term), probably wont be too motivated to start a big project, because actually they hope they can move\u00a0to a better place as soon as possible.\u00a0\nBut in fact people are having a lot of time! and they are really bored. But also very very worried. That must be a horrible state of mind. What can we do with it? The experience in the camp\u00a0where we were\u00a0building stuff all together, was really nice because we were doing something with our hands and totally\u00a0forgot the situation around us.\u00a0\n\u00a0\n","comment_id":"23235","post_id":"6389","user_id":"8589","parent_comment_id":"0","creation_date":"Monday, June 6, 2016 - 23:31","group_id":"0"}},{"node":{"title":"Safety issues?","content":"\nKitchens are kind of high-tech as home environments go. To function, they need powerful and potentially dangerous things like\u00a0electricity, fire, and sharp blades. In some administrative cultures (Italy, for sure) camp administrators might feel more at ease if their \"guests\" are not allowed near them. Yet another case in which liability issues contribute to render people powerless.\u00a0\n@Alex Levene documented several community kitchens in The Jungle. This seems to be a pattern. I think you are onto something, @Luisa !\n","comment_id":"23233","post_id":"6454","user_id":"34","parent_comment_id":"0","creation_date":"Monday, June 6, 2016 - 16:02","group_id":"0"}},{"node":{"title":"Great cooperative","content":"\nThank you @Noemi for this super interesting project link!\n","comment_id":"23229","post_id":"6454","user_id":"8597","parent_comment_id":"23222","creation_date":"Monday, June 6, 2016 - 12:00","group_id":"0"}},{"node":{"title":"Real inspiration #MaketheWorldaBetterPlate","content":"\nThanks for sharing this with us @Luisa.\u00a0\nI was convinced of this approach ever since I heard Jeff, a community member in Athens telling us about Senait's Kitchen to actually provide employment for migrants - a little like a company shell. In\u00a0a year they've gone through several iterations, bringing new migrants in the group of cooks, have catered to hundreds and are on their way of building a cooperative. Check out\u00a0Options Foodlab:\u00a0http:\/\/options.limited\/about-options\/\n","comment_id":"23222","post_id":"6454","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, June 5, 2016 - 09:56","group_id":"0"}},{"node":{"title":"Ideally this would happen","content":"\nAlex and Tomma can of course give you a more informed view, but on the top of my head I ask myself what goes in the mind of someone who landed there and expects this to be\u00a0temporary and short, only to see that days go by and turn into months. Volunteering is predicated on\u00a0some sort of idle capacity - but would those trapped perceive that they have that time? with being busy to figure out their own situation and wanting to escape\u00a0it.. (Alex makes the point of difficulty to engage\u00a0here\u00a0- fyi\u00a0I very much liked the idea of going through community leaders to see what possiblilities are worth trying\u00a0or not).\u00a0\n","comment_id":"23221","post_id":"6389","user_id":"32","parent_comment_id":"23220","creation_date":"Sunday, June 5, 2016 - 09:19","group_id":"0"}},{"node":{"title":"What about training volunteers to welcome next refugees","content":"\nHi there, i'm following this interesting discussion. I wonder if making possibile for the people inside the camp to be trained to welcome coming refugees (e.g.: moms helping with the arrival of next mothers in terms of understanding the needs, welcoming mothers, showing them around the camp and the area, taking contacts with the staff) and let them re-configure the camp as a collective action taken by the guests themselves to welcome better new refugees might help to overgo frustration and lack of communication. Having a daily goal -especially a shared one- might help and leaving one day the camp knowing that you did a part to make a better place of it would turn a \"senseless part of my life\" in a good memory of commitment and engagement.\n","comment_id":"23220","post_id":"6389","user_id":"8779","parent_comment_id":"0","creation_date":"Sunday, June 5, 2016 - 07:55","group_id":"0"}},{"node":{"title":"Meanwhile....","content":"\nI am trying to interest the EC's Policy Innovation Unit in the idea of a \"self-organized camp\", based on the intuition by @Alex Levene \u2013 and now this confirmation by @Tomma and others.\u00a0\nBut, I am not holding my breath. I will keep you guys posted.\u00a0\n","comment_id":"23219","post_id":"6389","user_id":"34","parent_comment_id":"23215","creation_date":"Saturday, June 4, 2016 - 23:11","group_id":"0"}},{"node":{"title":"Exercise is good for the mind","content":"\nA few links to websites (mostly from reputable\/establishment sources in the UK\/US) that offer links between physical excercise and improvements to mental health and wellbeing:\nhttps:\/\/www.mentalhealth.org.uk\/a-to-z\/p\/physical-activity-and-mental-health\nhttp:\/\/www.rcpsych.ac.uk\/healthadvice\/treatmentswellbeing\/physicalactivity.aspx\nhttp:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC1470658\/\nhttp:\/\/www.apa.org\/monitor\/2011\/12\/exercise.aspx\n","comment_id":"23216","post_id":"6339","user_id":"6559","parent_comment_id":"22890","creation_date":"Saturday, June 4, 2016 - 10:49","group_id":"0"}},{"node":{"title":"Hi Tomma,","content":"\nHi Tomma,\n\u00a0\nYou final comment here about wanting people to feel confident engaging not just in the 'safe space' but also in te wider world is something that i have been thinking a lot about.\nI frequently have conversations about the idea of 'agency' (in the sense of action or power) within the refugee community as so many of the relationships i see created and perpetuated are unnecessarily heirarchical (e.g. we give, you take\/ we teach, you learn)\nCreating solutions that don't treat displaced people like children is really important to me. I look forward to hearing what happens next for your project.\nAlex\n","comment_id":"23215","post_id":"6389","user_id":"6559","parent_comment_id":"22994","creation_date":"Saturday, June 4, 2016 - 10:37","group_id":"0"}},{"node":{"title":"Meeting with law expert","content":"\nEveryone, thank you for your support! @Alberto, yes it makes total sense to get into the regulations and we are on it. Right now it looks like our project is more and more shifting to the not \u201ccommercial\u201d side. There is already a big need just for cooking opportunities. @Yannick I like the idea of collecting the successful examples. With @Nadia we talked about a possible meeting with all the parties involved. A meeting where we would bring the people we got to know while researching in the last weeks and some law expert together. We think it would be very nice to give them the opportunity to directly talk and find out about the things, which matter most to them. Though we would prefer an informal atmosphere to allow a secure feeling for everyone. This really is important to them! That is why we do not want to invite someone from the \u201cparks and open spaces department\u201d at least not officially. We found out that they are the responsible ones here in Berlin. We already tried to find someone from a citizen initiative or from our broader circle of friends, but so far could not manage. By any chance do you have any idea whom we could ask? What do you think about formal vs. informal?\n","comment_id":"23196","post_id":"6401","user_id":"8597","parent_comment_id":"0","creation_date":"Thursday, June 2, 2016 - 16:34","group_id":"0"}},{"node":{"title":"A favourite of mine, this alarm signaling device","content":"\nI don't know which of the three solutions proposed by the community in the co-design workshops won and will be prototyped, but this seems like widely useful and needed.\nLet's hope it won't be too advanced in what it can do :-)\u00a0and risk something like with the baby monitors - they were first simple\u00a0audio devices with a clear functionality\u00a0and now they're IoT machines or what not, prone to hacking and violating\u00a0privacy.\nCurious, will the people who have already participated in the initial phase be involved in the actual prototyping?\u00a0\n","comment_id":"23182","post_id":"6440","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, June 2, 2016 - 08:29","group_id":"0"}},{"node":{"title":"Hi @Alberto,","content":"\nHi @Alberto,\nThank you for your interests and sorry for the late reply. Unfortunately, I am not too familiar with this area. All the information I have came from the news and stories I hear. I don't recall if I have heard punitive damage in China but I will take a look at it.\u00a0\nWith the little knowledge I have, and the experience of living in both China and the US for a long time, the impression--probably not accurate-- that I have on the health system in two countries is that in the States most problems are related to the high expense. Health insurance is expensive, calling an ambulance is expensive, there is always a long waiting in the hospital, and including what you mentioned--actions not being done to avoid suing. While in China, many problems are associated with lack of law enforcements and disrespect between people.\u00a0\nI will let you know if I find anything interesting.\n\u00a0\n","comment_id":"23181","post_id":"6242","user_id":"8662","parent_comment_id":"22597","creation_date":"Thursday, June 2, 2016 - 01:19","group_id":"0"}},{"node":{"title":"Hi @Noemi,","content":"\nHi @Noemi,\nYes, I am working on the same project with @Moriel, @ChristineOehme and @Luise Kr\u00f6ning. Thank you very much for your feedback. We will take a look at their project.\n\u00a0\n","comment_id":"23180","post_id":"6443","user_id":"8662","parent_comment_id":"23169","creation_date":"Thursday, June 2, 2016 - 00:12","group_id":"0"}},{"node":{"title":"Check this out","content":"\n\"Disabled people need barrier-free environments, acceptance, suitable language and connection.\"\nHey,\u00a0I\u00a0need those things too. Everyone does. So:\n\"Disabled people need barrier-free environments, acceptance, suitable language and connection.\"\nIt comes down to making sure you do not build barriers by assuming some kind of norm. The norm\u00a0is\u00a0the barrier.\n","comment_id":"23179","post_id":"6441","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, June 1, 2016 - 22:56","group_id":"0"}},{"node":{"title":"other projects","content":"\nThere are also other stories in the same context of Milan codesign sessions https:\/\/edgeryders.eu\/en\/fatti-pi-in-l-or-step-aside, https:\/\/edgeryders.eu\/en\/in-p\n\u00a0\n","comment_id":"23174","post_id":"6441","user_id":"8373","parent_comment_id":"23172","creation_date":"Wednesday, June 1, 2016 - 13:47","group_id":"0"}},{"node":{"title":"Check out the work that weMake is doing in Milano?","content":"\nHi Luise ( plus Moriel, Christine and Lujia),\nI saw from Susa that everyone has made great progress on their projects :) You may want to check out the work that @Moushira posted about \u00a0\u00a0here plus comments: https:\/\/edgeryders.eu\/en\/step-up\n\u00a0\n","comment_id":"23172","post_id":"6441","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, June 1, 2016 - 09:11","group_id":"0"}},{"node":{"title":"Have you seen the interview with Raul Krauthausen?","content":"\nI read this and was reminded of the conversation with \u00a0@moriel, @lujia, @ChristineOehme and @Luise Kr\u00f6ning about their product design project after this \u00a0interview with Raul Krauthausen.\u00a0\nThey are taking a different approach in asking how to create environments which are \u00a0\u00a0\u00a0inclusive by design and not by label.\nSomeone mentioned a website with a map of the city as seen from perspective of someone who has to navigate it with wheelchair: where there are no-go zones etc. Insight: many barriers are completely invisible to anyone not affected by them.\u00a0They proposed some design intervention towards making barriers in a decentralised manner visible as a first step. My opinion: making barriers visible is great when you also have the means to do something about it then and there without too much effort. Like a workaround where you can put something in place to make a staircase accessible etc. Without having to rely on the city or the architect or whatever to get involved. This\u00a0allows us to live out our better selves, rather than be guilted for yet another thing that someone else failed to do on our behalf. Or wait for change that never comes.\nMy two cents.\n","comment_id":"23171","post_id":"6438","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, June 1, 2016 - 09:07","group_id":"0"}},{"node":{"title":"Changing from the inside ","content":"\n@lujia hi! Are you working with @Moriel on this?\nYou might want to get in touch with members\u00a0in Milano for a slightly different problem and approach -\u00a0they zoomed in on the\u00a0problem\u00a0of\u00a0wheelchair mobility and how\u00a0disabled\u00a0people can't push their own wheelchairs and\u00a0be on their own. Better designed\u00a0wheelchairs\u00a0would ideally increase one's autonomy and freedom to move. It takes\u00a0out of the equation the need to be accompanied at any step,\u00a0which is after all a practical reality identified by the group in discussions and something which can affect how others treat you. \u00a0It would be interesting to study how perspective differ\u00a0- what goes on in people's heads when they see someone helped versus\u00a0when they see someone being on their own. Not sure how much it ties with your (more educational) approach, but as a learning point here's the idea where you can get in touch for more info.\n","comment_id":"23169","post_id":"6443","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, June 1, 2016 - 08:01","group_id":"0"}},{"node":{"title":"about Additive Manufacturing and 3D print for healthcare","content":"\nAt the end of january, the STOA (Science & Technology Office Assessment of the European Parliament) hosted a workshop about the study of the \"Impact and Potential of collaborative Internet and additive manufacturing technologies\". There are many clues and references about 3D printing development, trends in the field of education and healthcare. The possible scenarios are depicted thanks to a DELPHI-like study involving experts from all over Europe.\n\n\n\n\u00a0\n\n\u00a0\nThe full study on The Collaborative Economy is available in english.\n@Noemi\u00a0 @Costantino \u00a0 @Alberto\n","comment_id":"23153","post_id":"6422","user_id":"8779","parent_comment_id":"0","creation_date":"Tuesday, May 31, 2016 - 11:02","group_id":"0"}},{"node":{"title":"Hi Noemi,\u00a0","content":"\nHi Noemi,\u00a0\nyou make an important point, and it's something that we've been struggling a little bit with in our project. Everyone will most probably face some form of emotional stress at one point in their lives. These reflections were related to us trying to narrow down our target group and the issue we want to focus on. As we found a particular lot of\u00a0these issues popping up in our immediate surrounding\u00a0during our interviews, we were thinking to focus on young creatives. However, we are not quite sure if this even makes sense and Edgeryders is the right\u00a0context to explore this\u00a0or if we should approach the topic of mental health in a different way. Lots to figure out! Of course, all input is very much\u00a0appreciated!\u00a0\n","comment_id":"23135","post_id":"6388","user_id":"8602","parent_comment_id":"22996","creation_date":"Monday, May 30, 2016 - 15:13","group_id":"0"}},{"node":{"title":"Hi Alex,","content":"\nHi Alex,\nthank you for saying thank you! :) take all the time you need\u00a0\n","comment_id":"23137","post_id":"6388","user_id":"8602","parent_comment_id":"22978","creation_date":"Monday, May 30, 2016 - 15:11","group_id":"0"}},{"node":{"title":"Hi Patrick,\u00a0","content":"\nHi Patrick,\u00a0\nnice to meet you and\u00a0thank you so much for sharing your brothers story! \"I think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.\" Do you know of any good\u00a0projects like that? Something like the\u00a0Unmonastery perhaps, or are you thinking of something different?\u00a0\n","comment_id":"23136","post_id":"6388","user_id":"8602","parent_comment_id":"22992","creation_date":"Monday, May 30, 2016 - 15:10","group_id":"0"}},{"node":{"title":"Thank you for your comment ","content":"\nThank you for your comment @Noemi\nI'm not teaching about healthcare issues, but running a project about innovation with Education Technologies and CSCL adopting the University e-Learning site and coding by html around some github pages as you can see..\nUnfortunately the\u00a0 community interactions are the goal and not the mean. I'm doing my best to inspire students to share and collaborate online. From the social page you can ask to join the facebook group and DIIGO social bookmarking community; i will let in anybody asking for access. Other few e-tivities are run on the e-learning site, but the access is only for students and tutors of the campus.\nThe idea to run together some webinars seems great to me! In the AGENDA you find the (flexible) schedule about webinars; we might swap the listed issues, or just pick out some of them. I'd love to share ideas about such issues with anybody. We could arrange sessions in english too..and seen the interest for online ethnography have some meetings too to discuss about methods, studies and experiences.\u00a0 What about starting in June talking about \"e-patients and EHMs\"? That would be heaven! Usually i use a doodle survey to choose date and hour, livehangout for the videosession, archived on youtube then by a playlist.\n","comment_id":"23134","post_id":"6422","user_id":"8779","parent_comment_id":"23132","creation_date":"Monday, May 30, 2016 - 14:52","group_id":"0"}},{"node":{"title":"Physical wellbeing and relevance to techies","content":"\n@MariamDilbandyan, nice to read you and welcome again (I had messaged you last week). Thanks for this, it seems you're on a great track.\u00a0Your intuition of the client market seems about right, as physical wellbeing is increasingly important to techies and hackers.\nI looked up the employemnt stats because I wondered if\u00a0you meant 25 per cent of all the impaired, instead of 25 in absolute. Couldn't find it, and\u00a0found different numbers (total 25K impaired people), but this only testifies to the scale of the problem. I also came across another initiative called Culture House of the Blinds, which you probably know of already.\nPaging here @Moriel and their\u00a0group in Berlin looking for inspiring approaches to design for generalized\u00a0disability,\u00a0not even using the word \"disabled\"\u00a0in order to eliminate the stigma.\n","comment_id":"23133","post_id":"6421","user_id":"32","parent_comment_id":"0","creation_date":"Monday, May 30, 2016 - 14:41","group_id":"0"}},{"node":{"title":"The OpenCare for proper educational learning","content":"\nHi again @Federico Monaco, wow it struck me to see similarities in our approaches - the open approach to community learning in particular, and the focus on process. It seems you're more interested in teaching students collaborative practices than growing their knowledge of healthcare, which should follow naturally\u00a0as an outcome (by the way do you measure that in any way?).\nI have looked for the community interactions but the only space I found was this one (empty?)\u00a0https:\/\/puntozero.github.io\/community.html Should I go somewhere else?\nOne last point for now, your timeline follows closely OpenCare as well. Is it possible for non-registered students to participate in the webinars? If so, we might consider partnering up - as many\u00a0community\u00a0members here speak Italian and could be interested to join.\n","comment_id":"23132","post_id":"6422","user_id":"32","parent_comment_id":"0","creation_date":"Monday, May 30, 2016 - 14:08","group_id":"0"}},{"node":{"title":"In realt\u00e0 il mio timore \u00e8 che","content":"\nIn realt\u00e0 il mio timore \u00e8 che tale esposizione risultasse davvero troppo fantasiosa, utopica, ed un pochino \"fuffosa\".\nQuesto \u00e8 per\u00e0 ci\u00f2 che penso realmente, nonostante poi la vita dispensi indicazioni e \"risultati\" di tutt'altro indirizzo e spessore.\n","comment_id":"23126","post_id":"6341","user_id":"8523","parent_comment_id":"23119","creation_date":"Saturday, May 28, 2016 - 18:58","group_id":"0"}},{"node":{"title":"Per il momento, considerando","content":"\nPer il momento, considerando tutta una serie di difficolt\u00e0 \"logistiche\", \u00e8 mio desiderio misurarmi fattivamente sull'idea che decideremo il prossimo Mercoled\u00ec 1 Giugno a WeMake, nel corso della terza sessione di co-design del Progetto.\nTuttavia, poich\u00e9 l'appetito vien mangiando, non escludo di cimentarmi in futuro su idee e progetti ben pi\u00f9 \"personali\" ...includendo la super wheelchair interattiva! :-)\nReplicando brevemente sul tema del cammino interiore, confesso di essere altrettanto sopreso e contento di come un lungo percorso \"sotterraneo\" - carsico - abbia trovato uno sbocco in modo cos\u00ec semplice e naturale. Evidentemente il coinvolgimento in un progetto di confronto e condivisione costituisce una vera e propria tecnica \"clinica riabilitativa\" per le nostre vite, troppo abituate a restare oggetto di valutazione - e di dispute - da parte di altri.\n","comment_id":"23125","post_id":"6341","user_id":"8523","parent_comment_id":"22832","creation_date":"Saturday, May 28, 2016 - 18:54","group_id":"0"}},{"node":{"title":"Matter of Time","content":"\nGuess Germans want to spend the little freetime they have without getting stressed about more appointments. They just want to do what they feel like in that moment. If somebody wants to join spontaniously that\u00b4s fine.\nWe are in touch with the people from let\u00b4sintegrate\u00a0and are willing to extend their program on a less obligative way but to rise out of a situation.\nThank\u00b4s for your comment!\nMarie\n","comment_id":"23120","post_id":"6419","user_id":"8590","parent_comment_id":"23118","creation_date":"Saturday, May 28, 2016 - 12:24","group_id":"0"}},{"node":{"title":"coinvolgere soprattutto il mondo del bisogno","content":"\nE' molto interessante e conciso ci\u00f2 che scrivi, soprattutto quanto segue: \"una via percorribile, questo \u00e8 il presupposto e nel contempo l'obiettivo del Progetto, che deve sicuramente sorprendere, sollecitare e coinvolgere soprattutto il \u201cmondo\u201d del bisogno, oltre a quello istituzionale ed economico sociale, per garantire un terreno \u201cdi coltura\u201d favorevole all'avvio di iniziative e progetti che naturalmente rispettino l'integrit\u00e0 delle persone e delle loro legittime aspettative, che debitamente tengano conto del supporto e dell'impegno della collettivit\u00e0 e che ne garantiscano l'azione solidale attraverso le buone pratiche di indirizzo e di governo locale, nazionale e transnazionale.\"\nGrazie @Francesco Maria ZAVA\n\u00a0\n","comment_id":"23119","post_id":"6341","user_id":"8779","parent_comment_id":"0","creation_date":"Saturday, May 28, 2016 - 12:18","group_id":"0"}},{"node":{"title":"It probably needs to happen seamlessly..","content":"\nHi @MarieScheurer ! \u00a0\nI find that the proposition (for Germans) can make a difference: when you are asked to come and commit to do something and be responsible for it\u00a0is different than when you are asked to join a social gathering, or simply have fun.\u00a0\nA proposition I loved was the one by Tonguesten (here on Edgeryders) - who are mixing language with culture, and frame it as being part of a community of language learners.\nAny idea of why they are reluctant and don't want to feel obligated?\n","comment_id":"23118","post_id":"6419","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, May 28, 2016 - 12:07","group_id":"0"}},{"node":{"title":"Unless you turn it into a festival..","content":"\nWhere I come from a\u00a0funny thing is happening: everyone loves festivals, especially during this time of the year, May-June before students are out of town for holidays. We had very strict regulations about sitting on the grass\u00a0in our central park, you know that kind of green space where you really want to spend time in nature but can't because it's too cosmeticized? Nowadays there's Jazz in the Park and the Big Hammock Day and these kinds of events which start as one offs but then create a demand and become a habit. What they have in common is that they start with a big push.\n","comment_id":"23117","post_id":"6401","user_id":"32","parent_comment_id":"23115","creation_date":"Saturday, May 28, 2016 - 11:28","group_id":"0"}},{"node":{"title":"NO BBQ in Brussels :(","content":"\nWhaaa that would be a dream, but in Brussels for 'safety reasons' we can't BBQ in any park in the region, i'm really thinking about how to change that, but we are not enough. At this moment the open air pools is finally a worth a debat, so we concentrate on that. We don't have any open air pool in Brussels either :(\n","comment_id":"23115","post_id":"6401","user_id":"8743","parent_comment_id":"23083","creation_date":"Saturday, May 28, 2016 - 11:13","group_id":"0"}},{"node":{"title":"Ok.. homework for me.","content":"\nThanks.\u00a0It's not just you, I had read your Amish related post and at the time was just working on this one on my own.\u00a0So clearly there is something there about tightly knit communities making decisions together and planning thoroughly their care system - investments and returns.\nAs to the cytostatics, you're right - I will ask Vlad\u00a0and common friends to make a connection and take it from there. Of course, establishing causal links between someone setting up a massively effective thing like this network or the Greek clinic and their recruitment into politics is more complex. As far as I know\u00a0Vlad is also VP in the\u00a0European Cancer Patient Coalition and organises an annual camp for children diagnosed with cancer. So there are credentials backing up his current position.\n","comment_id":"23098","post_id":"6416","user_id":"32","parent_comment_id":"23096","creation_date":"Thursday, May 26, 2016 - 21:28","group_id":"0"}},{"node":{"title":"What. The. Hell.","content":"\n@Noemi, this is probably your best post yet. You knocked me right out there.\u00a0\nI need to think more about your questions in bold. It seems you have in mind an Amish-like solution \u2013 or is it me being under the influence of that article?\nBut I do know this: OpenCare needs to know more about the Cytostatic Network. I appreciate your friend Vlad is \"busy\", but I am sure you can dig out someone who was in the front line of the Network. That's an OpenCare Fellowship right there.\nMaria, the woman in the Helliniko Community Clinic, told us that the doctor who started the original community clinic (the one in Rhodhes) had just been appointed minister in the reshuffled Tsipras administration at the time of our visit there (October 2015). If this is a pattern, it's a very interesting one.\u00a0\nHow about getting in touch and offering to partner up for an event on open care in Bucharest? I'm completely improvising, but... open care bootcamp? Showcasing this sort of \"shadow govt innovation\"?\n","comment_id":"23096","post_id":"6416","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, May 26, 2016 - 20:27","group_id":"0"}},{"node":{"title":"Monday should be fine as well","content":"\nLet's try on Monday then.\nRuxandra\n","comment_id":"23091","post_id":"4363","user_id":"5157","parent_comment_id":"0","creation_date":"Thursday, May 26, 2016 - 14:12","group_id":"366"}},{"node":{"title":"If you're into how systems deliver health care..","content":"\n.. well @Pauline and @lujia, you might be interested in Eastern European care as well - I just published some of my own experiences here.\n","comment_id":"23090","post_id":"6242","user_id":"32","parent_comment_id":"22937","creation_date":"Thursday, May 26, 2016 - 13:43","group_id":"0"}},{"node":{"title":"BBQs in public spaces ","content":"\nSeriously? In Italy BBQs in the park are big \u2013 well, in Milano at least, now that I think of it I never saw it done in Emilia Romagna. I think the fad was started by the Peruvian community, who moved in in force. There are even web pages on \"the best parks to do BBQ in Milan\", or Rome, or whatever:\u00a0http:\/\/www.viaggiamo.it\/parchi-dove-fare-grigliate-a-milano\/\nThis is fairly typical:\u00a0\n\n","comment_id":"23083","post_id":"6401","user_id":"34","parent_comment_id":"23080","creation_date":"Thursday, May 26, 2016 - 11:43","group_id":"0"}},{"node":{"title":"Wonderful project","content":"\nI love this idea, and it would be interesting to see it develope in multiple cities around europe. Berlin is lucky for one part: you have bbq zones a bit everywhere. There can be a lot shared through BBQ and i saw it when i visited Berlin that all kind of social classes use it and make it feel lik, e home. This is important.\u00a0\n\nProblem for cities in europe is that they aren't designed to have multifunctional public spaces. It is starting to shift, but it is still a long way to go. in Brussels for exemple you can't BBQ anywhere but in your garden, that makes it difficult because gardens are becoming something more rare when people are starting to live in smaller and smaller spaces. So yes there needs to be a new regulation. I know for Brussels what could help is people hacking the system in big number, the legislation almost always follows up then. But you have to know how to play media and politics before, so it isn't easy for newcomers to have that background. Having a guide of succesful tests could be usefull yes. You could develop A Taste Of Home as a platform for those experiments anywhere in Europe, and if communicated well people will use it as a guide. And legislation will see, if succesful, that there is an urge in their space to work around that!\u00a0\n\nGood luck with the project and keep us up to date!\n","comment_id":"23080","post_id":"6401","user_id":"8743","parent_comment_id":"0","creation_date":"Thursday, May 26, 2016 - 10:50","group_id":"0"}},{"node":{"title":"Hi! I'll be on a train then, but Monday?","content":"\nWorks for you?\n","comment_id":"23074","post_id":"4363","user_id":"45","parent_comment_id":"23073","creation_date":"Thursday, May 26, 2016 - 07:57","group_id":"366"}},{"node":{"title":"Yes, definitely","content":"\nHi Nadia,\nyes definitely we can have a skype call late morning on Friday if that is ok with you. Just ping me on skype.\u00a0\nRuxandra\n","comment_id":"23073","post_id":"4363","user_id":"5157","parent_comment_id":"0","creation_date":"Wednesday, May 25, 2016 - 21:47","group_id":"366"}},{"node":{"title":"Thank you for explaining!","content":"\nYes, I think that is why we started using the term \"newcomers\" in our group as well when we first heard about it and you are absolutely right, that some of those \"newcomers\" are already having strong cultural claims to a space. It was during the interviews we did when we first came along this paradox. I will put up another post on our complete research development and include this observation there as well. Thank you for your help!\n","comment_id":"23063","post_id":"6192","user_id":"8597","parent_comment_id":"23050","creation_date":"Wednesday, May 25, 2016 - 14:28","group_id":"0"}},{"node":{"title":"Well targeted, this HiMate initiative","content":"\nI appreciate its message to companies, makes it clear and quite convincing.\nActually \"newcomers\" is the most generic, broad enough and also non-offensive term we came up with for this OpenCare challenge. It turns out that most of us have fit that category at some time in our lives.\u00a0I only wanted to point out that projects looking at integration of sorts might need to acknowledge that those who are perceived as newcomers\u00a0can already have strong cultural claims to a space because they are already shaping it\u00a0e.g. working\u00a0migrants, or foreign\u00a0students settling to a space.\u00a0\nAnd so even this generous term falls short. Will keep thinking about this.\u00a0\n","comment_id":"23050","post_id":"6192","user_id":"32","parent_comment_id":"23048","creation_date":"Tuesday, May 24, 2016 - 12:57","group_id":"0"}},{"node":{"title":"What other term to use?","content":"\n@Noemi yes, I think you are right! It would make total sense. We had a guest from HiMate last week at university. I think they build up their platform being such a diverse group from the beginning on. It is a free voucher platform for refugees, similar to Groupon. Maybe interesting for you? Nadia was at the meeting as well. About the indeed generic term \"newcomers\", do you have any suggestion what else to use?\n","comment_id":"23048","post_id":"6192","user_id":"8597","parent_comment_id":"23041","creation_date":"Tuesday, May 24, 2016 - 11:25","group_id":"0"}},{"node":{"title":"Time to dust this off again","content":"\nPing @Ruxandra do you have time for a chat about this in the next few days? I think it may be time to look into this in the context of care. @Susa and I are running Hacking Utopia, a studio course on product design for social and demographic change at UDK. (it's tied to the OpenCare project). They're currently coming out of the research phase in which they have been guided through a process of identifying and understanding where they could make meaningful design interventions (products and or services). Today they're going to summarise what they have learned and what they want to build (I'll post documentation online here later). Next they will be actually designing the products and I think the process above could be very helpful. Would you be up for joining a skype call where we help them to think through the business modelling\/sustainability design for their products?\n","comment_id":"23047","post_id":"4363","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, May 24, 2016 - 08:00","group_id":"366"}},{"node":{"title":"Excellent question! ","content":"\nWell done, @Luisa and all. I like how you narrowed a generic problem down to a specific one (integrate the interactive food customs \/ traditions).\u00a0\nIt may be harder than just writing a step-by-step guide to starting a street food activity and translating it into several languages.\u00a0I do not know Germany well, but in Italy the regulatory landscape is a lot tighter than what seems to go for Asian markets (eg Thailand). The moment you start serving food to the public, you need to comply with licensing, safety,\u00a0hygiene regulations. Additionally, many market operate a fixed number of stalls: you cannot just add a food cart as you would in other parts of the world. All of this increases the fixed costs of starting an activity. Every year, as the summer comes and festival season kicks in, the police braces to fight off illegal hawkers (who are, for the most part, just people trying to make a living, many of them migrants). The legal ones are very vocal in demanding that the police shuts down their competitors on fairness grounds (\"we have to comply with all these expensive regulations, whereas these guys just go gray economy\").\u00a0\nIn passing: within Europe there are already subastantial regulatory differences. I live in Belgium, and here tiny restaurants with toilets in the basements, that you access through narrow and steep stairs, are very common. In Italy they would all be illegal: restaurants need to have wheelchair-friendly facilities, fire exits whose number and width depend on venue\u00a0capacity, and so on. By my own guesstimate, about half of the restaurants in Brussels would have to shut down if the Italian regulation were ported to Belgium.\u00a0\nSo, I guess a first step towards\u00a0A Taste of Home\u00a0is mapping out the regulation, and trying to figure out what the minimum investment needed to start a small food related activity would be. Makes sense?\n","comment_id":"23042","post_id":"6401","user_id":"34","parent_comment_id":"0","creation_date":"Monday, May 23, 2016 - 11:13","group_id":"0"}},{"node":{"title":"No worries about late response, glad to see you back.","content":"\n@Luisa, just a quick thought: maybe Welcome Dinner is more popular with locals than newcomers because of the way the team is configured - mostly locals I'm guessing? If \"newcomers\" (generic term because newcomers might have been around for some time now!)\u00a0were actually part of the design and the project team they'd have new insights into how more diverse communities can be engaged. This is exactly what we're looking at with OpenCare - novel ways of improving\u00a0promising projects out there, even if these new ways are\u00a0just insights or if it means borrowing ideas from different projects faring better already.\u00a0\n\u00a0\n","comment_id":"23041","post_id":"6192","user_id":"32","parent_comment_id":"23036","creation_date":"Monday, May 23, 2016 - 11:07","group_id":"0"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"5954"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"5954"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"438"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"438"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"4260"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"5954"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"4260"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"438"}},{"node":{"title":"This is more about shared learning imho","content":"\nThis thread is part of an effort of arriving at the right questions to\u00a0reveal\u00a0new knowledge: knowledge of approaches, of projects out there, of ways that work and dont in terms of support (more than fixes). If we manage to draw in different people some of whom have experiential knowledge with projects you mention @johncoate, even better. If some of the people joining the conversation are running an initiative and they can improve it on the basis of that new knowledge, even better.\u00a0\nif we, together, decide to take on new avenues as a continuation of the conversation (an OpenCare spinoff?), well that is the most outcome to come out, so who knows..\n","comment_id":"23040","post_id":"6390","user_id":"32","parent_comment_id":"23033","creation_date":"Monday, May 23, 2016 - 10:50","group_id":"4260"}},{"node":{"title":"Sorry!","content":"\nHey everyone! Thank you so much for commenting and taking part in this conversation. I just recently noticed how many people replied. A huge sorry for not having written back any earlier! Alberto, I like the story of your party very much. Even though this was the question I started with, at the moment I or better we, because we started working as a group, are more focused on the relation between the use of public space, food culture and the feeling of home when it comes to people on the move. I will open another post for those interested. So sorry again and it will not happen again!\n","comment_id":"23037","post_id":"6192","user_id":"8597","parent_comment_id":"0","creation_date":"Sunday, May 22, 2016 - 22:35","group_id":"0"}},{"node":{"title":"Hey Noemi,","content":"\nHey Noemi,\nA huge thank you for your fast respond and an even bigger sorry for not having written back any earlier!\u00a0 It was just recently that I noticed that you and so many other people had commented on this. My bad and it will not happen again. Sorry! I had a look at Dine With Us and liked it a lot. Thank you for the link! It is a bit similar to Welcome Dinner in Berlin where I have already signed up couple of weeks ago but am still waiting for a match. There are a lot more locals interested or at least signing up for it at the moment than newcomers \u2013 maybe due to the flyer-bans in Berlin\u2019s refugee camps?\u00a0 If I get a match I will tell you about the experience.\nAbout your practical experience I have pretty much experienced the same thing so far. For me as well, it has been mostly about winning arguments with people I am closed to. It often works by sharing good stories I have experienced.\n","comment_id":"23036","post_id":"6192","user_id":"8597","parent_comment_id":"22214","creation_date":"Sunday, May 22, 2016 - 22:26","group_id":"0"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"438"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"4260"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"5954"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"4260"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"438"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"4260"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"5954"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"5954"}},{"node":{"title":"I guess","content":"\nFollowing @kate_g's train of thoughts, they exist but they do not listen. They say the wrong things. They try to \"fix\" people. Is that so, Kate? I have no experience of my own to contribute.\nFrom an OpenCare perspective: they exist. But are they provided by communities to themselves? Or is someone cast as the \"solution provider\" and someone else as the \"vulnerable group in need of help\"?\n","comment_id":"23033","post_id":"6390","user_id":"34","parent_comment_id":"23031","creation_date":"Saturday, May 21, 2016 - 20:49","group_id":"438"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"5954"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"5954"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"438"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"438"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"4260"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"5954"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"4260"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"438"}},{"node":{"title":"Questions","content":"\nIf you Google \"mental health support group\" and add Liverpool, London, Brighton, Brussels or just about any other location in the EU, you get a lot of links to groups already actively doing what is being described here (from what I gather, could be I'm missing something). \u00a0If you add \"online\" to that you still get relevant results, though far fewer.\nMy question then is, how would what's being described, or at least hinted at, here be different or perhaps better than what is already going on. \u00a0Or, how can the exisiting activity be supplemented or improved? \u00a0Or, is the idea to use online communication to reach entirely other people than who uses these existing resources? \u00a0\u00a0\n","comment_id":"23031","post_id":"6390","user_id":"8169","parent_comment_id":"0","creation_date":"Saturday, May 21, 2016 - 17:30","group_id":"4260"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"4260"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"5954"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"5954"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"438"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"438"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"4260"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"5954"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"438"}},{"node":{"title":"Slow burning too. How else re: emotional health?","content":"\nYours is already\u00a0a very useful contribution @kate g, thanks so much. It signals we're on a good track - that we need\u00a0to approach this with care, with focus on peer listening (already a strong point made by the folks cited in the notes above), and with some magic combination between digital and open ended\u00a0conversations + structured\/ generic\/ maybe even\u00a0ritualized format of fostering exchanges.\u00a0\nYou mentioned\u00a0Geneva and\u00a0therapy work, and\u00a0reminded me to also include @Kaja in this conversation, who was\/is(?)\u00a0working there and looking into alternative therapy practice.. Kaja, curious if you\u00a0have\u00a0tried\u00a0anything around group work? Or do you have any insights about ways in which communities trying to help themselves and members become more emotionally resilient\u00a0can borrow things that work in the professional practice? \u00a0No need to reinvent wheels if there's good stuff already there.\n","comment_id":"23027","post_id":"6390","user_id":"32","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:27","group_id":"4260"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"438"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"5954"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"4260"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"5954"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"438"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"438"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"4260"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"4260"}},{"node":{"title":"Ok...","content":"\nOk, so here's the intuition I see in your comment, @kate_g.\n\nTake an online community with a commitment to constructive interaction \u2013 one with quite strong community management.\u00a0\nIt is not so far from a support structure based on human-to-human listening. You could probably hack your way from healthy community to support structure.\n\nIs that it? If so, it is quite actionable, therefore powerful.\u00a0\n","comment_id":"23026","post_id":"6390","user_id":"34","parent_comment_id":"23025","creation_date":"Saturday, May 21, 2016 - 10:23","group_id":"5954"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"5954"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"438"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"5954"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"4260"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"5954"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"438"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"438"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"4260"}},{"node":{"title":"I don\u2019t know - I\u2019m open - I","content":"\nI don\u2019t know - I\u2019m open - I was interested in this topic wanted to put down some thoughts.\nInstinctively I\u2019m drawn to systems that allow people to vocalise, listen and be listened to in a particular place. Perhaps the digital simply helps to organise something which is then a \u201clive\u201d experience. There\u2019s a long history of formal conversations as playing a vital part in processing atrocities - I will not write another long mail of examples! - but it made me wonder if that kind of designed experience (sharing experience, care, validation, human dignity) can be made into a more generic invitation. \u00a0\nThere\u2019s something in the idea about spending distinct and limited periods of time in group processes around emotional processing and communication. Feels like that is useful to all as you say - an often over-looked necessary act of hygiene perhaps. Particularly important for those trying to work and live in different ways - living on the edge takes some real practical and emotional resilience, as edgeryders articulates so well.\nWhen it comes to practical implementation, I\u2019m setting up an experiment in Brighton for September around place and sharing experience & looking out for volunteer opportunities in psychotherapy group work. Just starting up a collab working with the Uni of Geneva Center for Affective Sciences on touch and emotions - though that\u2019s not focussing on emotion processing from a cultural perspective, which is what grabbed me about the initiative above.\nA slow burner - personally, I need to gain some more active experience to be really useful on this - and very happy to follow this discussion & input if relevant.\u00a0\n& the Nepal connection\u2026 Worked on a small project in Liverpool after the Nepal earthquake, a Nepalese hornbill audio sculpture that explored how network technology could make audible the word on the street & the dreams people were having\u00a0http:\/\/byzantium.chroma.space\/about\/\u00a0 Was designed to be developed for Nepal, but it was vandalised so back to the drawing board with it\u2026 hope it will come through in time. Simple experience gained in the process of making the\u00a0work around the dramatic power of shared expression for processing trauma & that network tech makes possible new ways of facilitating this. All sorts of problems around crowd sourcing psychotherapy -\u00a0equal relations and shared experience feels like a stronger emphasis: designing systems for\u00a0\"live\", sincere, courageous conversations which puts some trust back in the (extended) neighbourhood as equipped\u00a0to hold together around\u00a0the varieties of experiences endured on this earth.\n\u00a0\n","comment_id":"23025","post_id":"6390","user_id":"7717","parent_comment_id":"23023","creation_date":"Saturday, May 21, 2016 - 03:20","group_id":"4260"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"438"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"4260"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"4260"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"5954"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"438"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"5954"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"4260"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"5954"}},{"node":{"title":"I barely grasp it...","content":"\nWell met again, @kate g! This is a hell of a comeback.\nThere seems to be a deep intuition here. \"Something about the experience of another person...\" this is how we learn everything in Edgeryders, we discourage vouching opinions and encourage sharing stories (preferably one's own) because they are so much thicker and richer. This is across the board, not just around mental health \u2013 in fact we had not gone into discussing\u00a0mental health so far, not really.\nWhat I don't understand is: are you thinking around some online space for this?\u00a0\nWait, what? Nepal? Now that's a coincidence :-)\n\u00a0\n","comment_id":"23023","post_id":"6390","user_id":"34","parent_comment_id":"22998","creation_date":"Saturday, May 21, 2016 - 01:16","group_id":"438"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"5954"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"438"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"5954"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"4260"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"5954"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"438"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"438"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"4260"}},{"node":{"title":"Support rather than \"fixes\"","content":"\nAnd here it is. This rings very true. No one can \"fix\" anyone else (unless in emergency surgery, probably). But humans excel at support, when we can be bothered!\u00a0\n","comment_id":"23022","post_id":"6390","user_id":"34","parent_comment_id":"22977","creation_date":"Saturday, May 21, 2016 - 01:04","group_id":"4260"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"5954"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"438"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"5954"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"4260"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"5954"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"438"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"438"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"4260"}},{"node":{"title":"\"that everyone\u00a0who lives in a","content":"\n\"that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place\"\nBeautiful idea, it feels too beautiful to not be true. Like mathematic formulae.\n","comment_id":"23004","post_id":"6390","user_id":"6559","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 17:15","group_id":"4260"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"4260"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"5954"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"438"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"438"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"4260"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"4260"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"5954"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"438"}},{"node":{"title":"Really interested in this topic","content":"\nEver since the election in the UK I've been doing a lot of vox pop on the streets (Liverpool, Paris, Brighton) and listening to people around the question\u00a0of what do you long for in the place where you live?\u00a0I've been\u00a0trying out different ways of\u00a0leading people towards this question, either through asking about their dreamlife or asking them to imagine themeselves into a future they would like to live in. Through these talks it\u00a0came up again and again that a lot of people\u00a0really were living through enormously challenging situations and traumas\u00a0and very willing to normalise it in conversation\u00a0and shrug it off. Listening to people simply as humans without any judgements around what kind of state they were in (eg. seeing all the people I met simply as humans experiencing the world, rather than classifying some as\u00a0experiencing states that were\u00a0\"abnormal\" or could be classed as\u00a0\"mentally ill\")\u00a0felt like a helpful thing -\u00a0the urge to have one's experience understood unites everyone. I was thinking about networks that could help this (and thinking around\u00a0digital networks - Airbnb \/ dating apps etc. and looked at\u00a0some mental health apps\u00a0)\u00a0I was mostly thinking about place and the fact that it\u00a0is true of all places that there would be really wretched experiences in need of processing and how this reality is something that\u00a0needed stepping up to. \u00a0I don't know of many\u00a0political\u00a0utopias that really take into account neurodiversity and conditions like\u00a0dementia.\nThis\u00a0perspective is drawn from my experience of talking to a multitude of strangers\u00a0these last few months and I realise there are many many issues when it comes to mental health. But I'll share my naive view as\u00a0I've been considering the role that I'd\u00a0taken\u00a0up in\u00a0wandering about listening\u00a0to whoever wanted or needed to talk and about the emotional healing of groups of people and how we so inadequately meet that in product driven cultures. The experience\u00a0left me thinking that peer support was exactly what was needed by a lot of people. Psychologists are too expensive for most and online tick boxes are not at all like being listened to or sharing experience.\u00a0There is something in spoken expression, being listened to and accepted that is\u00a0just vital for emotional processing. With a few technologists I\u00a0prototyped some systems that used voice recordings to play back these \"real\" expressions to others.\u00a0Again the emphasis was not on mental illness but on the similarities and the differences in the\u00a0longings of the inhabitants of particular locations - the project was inspired by thinking about\u00a0how it might be possible to\u00a0make networks in Nepal that in some way help\u00a0the expression and social processing of the shock around the earthquake.\u00a0However,\u00a0there had been a depth in\u00a0the experience of the interchanges that had happened\u00a0whilst\u00a0making the recordings that were\u00a0more interesting than the voice playback system. The interviews\u00a0always came out of a \"live\" sharing of experience (ie. the interviewee's expeirences and my own) and involved risk,\u00a0personal disclosure,\u00a0agency and shared discovery in a way that listening to a recording does not.\u00a0I am still wondering about\u00a0digital systems that allow\u00a0people to talk directly to each other in a structured way that could help them process their emotional situations. And I considered the various kinds of\u00a0conversations people might want - just to speak or perhaps a more formal recorded conversation that involved making a commitment.\u00a0Witnessed formal\u00a0statements - like rituals - can create marker points in people's lives.\u00a0Alchoholic's anonymous is probably a relevant example.\u00a0I wondered about the Samaritans model which sets up this sense that you can make a telephone\u00a0call if you are desperate and the \"Samaritan\" is steady,\u00a0sane and absolutely OK. I wonder about\u00a0a network\u00a0that simply says: whatever you are going through is part of the human experience ie. there is no\u00a0broken experience, but there certainly is incredibly challenging experience. \u00a0\nIt feels like a\u00a0given that two people who are\u00a0in grief may find solace in sharing their\u00a0real experience and connecting.\u00a0\u00a0And yet, to generalise,\u00a0Western communities often put empahsis on usefulness in society and direct\u00a0those\u00a0exhibiting signs of mental distress to simply \"be OK\"\u00a0\/ go on medication \/ fix themeselves\u00a0-\u00a0\u00a0I totally agree with the point you are bringing out that\u00a0\"the community\" is often woefully\u00a0dysfunctional at supporting or accepting unusual emotional situations. I wonder about a network that\u00a0links people as humans wanting to share something specific in a particular area of the world - so the region is the unifier, not the emotional suffering.\u00a0Perhaps I'm thinking of a more generalised target audience than you are considering but my sense is after walking Liverpool,\u00a0that everyone\u00a0who lives in a distributed\u00a0area\u00a0is in\u00a0someway involved in processing the emotions experienced in\u00a0that place. I'm aware this is a poetic notion but I think\u00a0various imaginative\u00a0re-framings\u00a0of the issue of mental health\u00a0is what's needed. Maybe this would only work as a\u00a0three way conversation with someone trained and with really\u00a0clear guidelines around use but my thinking here is that what's needed is not this expert \/ patient relationship but two humans sharing different experiences of living in a similar\u00a0place.\u00a0\nMy friend Denis Ngala at\u00a0TICAH, the Trust for Indigenous Culture and Health, an organisation in Kenya that works in linking\u00a0health and cultural knowledge was telling me about the work that was being done in Kenya\u00a0around victims of torture and reintegrating them back into society after they had given freedom again. The emphasis\u00a0he was communicating\u00a0was that recovery was not the problem of the victim\u00a0of torture\u00a0alone, but that it was the\u00a0community's task. They were working\u00a0to educate the community around how to support the individual live beyond\u00a0what they had lived through.\nReal-life conversations from real experience in which neither party is an expert\u00a0can be life changing.\u00a0I work a lot with VR and seeing through another's eyes is certainly helpful but what\u00a0really leads to\u00a0change is\u00a0honestly communicating difficult\u00a0experience and listening to others and accepting their experience. There's some sort of validation in the honesty of that\u00a0process that allows for shifts.\u00a0There are lots of CBT, brain training, \"look at things brighter\" apps around but perhaps\u00a0there's room for bold\u00a0digital networks - with some serious legal tick boxes in place\u00a0-\u00a0that\u00a0make possible structured honest relational\u00a0experiences between people in a particular place. It feels like using the digital to practice honestly speaking and\u00a0speaking in one's own name rather than anonymously would be helpful at this point. The histories of Snapchat et al. show the many superficial\u00a0ways that communication can go, but\u00a0there's a saviness emerging around\u00a0structuring and limiting online\u00a0encounter and creating a precise\u00a0invitation that makes me think it's possible. Online experiences\u00a0that move\u00a0into\u00a0relational and creative territory and away\u00a0from the sense that\u00a0mental difficulties have to be born alone like a scapegoat in the desert or solved once and for all\u00a0like winning in a\u00a0game - there's something about the unique experience of another person that is a random element that can startle out of insularity. An app for conversation for people in a particular country? A way of marking personal commitments to the self and receiving some real social validation for it? A whole raft of comedy solutions that normalise\u00a0being in dire straights and make\u00a0it feel like it's worth making the epic journey back to life?\u00a0Not sure, but you're right that there is a real need for help\u00a0with\u00a0processing emotions and it's something that a healthy culture should be able to give. \u00a0\n","comment_id":"22998","post_id":"6390","user_id":"7717","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 05:55","group_id":"5954"}},{"node":{"title":"I can't offer much, but maybe Finbar can","content":"\nSomeone like me who is not a creative or art\u00a0professional could simply read the emotional stress\u00a0as common angst. Stress is so widespread nowadays most of us are struggling in a way, so.. really don't know.\nHave you looked into art therapy or therapeutic gardening?\u00a0Also, my newest friend @Finbar247 in Ireland who is both an accomplished artist and\u00a0\"an old soul\" (we like to joke :))\u00a0might be able\u00a0to offer more\u00a0advice. Hang in there.\n","comment_id":"22996","post_id":"6388","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, May 19, 2016 - 00:55","group_id":"0"}},{"node":{"title":"Hey Alex and Noemi!","content":"\nHey Alex and Noemi!\nthanks for your support. To your questions Alex: Yes they are allowed to leave the camp. Its kind of hard for them to bring\u00a0friends inside who dont live there though (pretty weird feeling because it was so easy for us to enter)\u00a0\nWe actually had a little experiment today and brought materials like duckt tape, cable ties, strings, cardboard (materials that you dont necessarily need proffessional tools for) to one room to see what would happen. Just after a little time os insecurity they started finding solutions in terms of \"unpacking\". That seems to be the biggest issue.. The room is a organised mess and they wanted to have items to put their stuff in. It was a really cool experience to see how everyone together was solving problems. In the end we had two really nice shelf constructions!\nThere is a lot of unused material inside the camp, that\u00a0is going to be thrown away.. if there would be better communication between the organisation and the refugees they could probably use these too.. (to be fair: the Malteser who are running the camp are already having kind of good communication.. so far we only good positive feedback and lots of permissions!)\u00a0\nBut i really like the idea of going out of the camp to get materials,\u00a0also because in the end its about not only having the courage to hack the \"comfort zone\" but to feel able and free in the \"outside world\" (that is really a feeling of home)\u00a0\n","comment_id":"22994","post_id":"6389","user_id":"8589","parent_comment_id":"0","creation_date":"Wednesday, May 18, 2016 - 23:24","group_id":"0"}},{"node":{"title":"link between sensivity and creativity","content":"\nPauline, your post made me think of my brother. At school he was artistic and a left hander, naturally talented at sport, and very sensitive (for example, he once walked into a house and sensed a ghost, which the owners later confirmed; another time, he avoided a major accident because he sensed something and changed his route on his motorbike). Life has been a bit of a struggle for him - he has pursued conventional success and it didn't suit his temperament and he complains about life being constant suffering (although sometimes it as if he seems to enjoy the suffering, otherwise why would he keep doing it?). He also drinks alcohol a lot - I have always asssumed this is because he finds life challenging, because he is so sensitive.\u00a0 Having said this, he is still creative and charming and loveable. But he is hard to be with sometimes.\nI think modern life makes it very hard for such people and you need to try to find ways to live on the edge, and places to escape.\n","comment_id":"22992","post_id":"6388","user_id":"446","parent_comment_id":"0","creation_date":"Wednesday, May 18, 2016 - 18:02","group_id":"0"}},{"node":{"title":"Different online cultures...","content":"\nThat's very informative, @jdossou80@yahoo.com, thanks.\u00a0\nIt seems that in the USA and Europe there is a \"middle generation\": people that got on the Internet when it was still relatively new, let's say before 2006. Those people managed to see the tail end of the noncommercial Internet; and they remember what it means for using a website to to be \"hard\": slow dialup connections, textual interfaces, floppy disks with vintage browsers like Mosaic and Netscape. These people make good online collaborators; they go for content and community, and if they need to work a little harder to get it they will. This means they will forgive you websites like Edgeryders, that do not have the usability firepower of Facebook.\u00a0\nYounger people here are harder to engage. They have never known anything but superfast Internet with integrated video, always available on their smartphones. They do not miss the free, noncommercial web of the early days, an\u00a0\u00a0have less patience for minor technical flaws.\u00a0\nFrom what you say, Africa skipped the early phase of the Internet. Almost everyone who is online now got online in the last 5 years. They have never known anything but Facebook. It is the only game in town.\u00a0\nHmmm.\u00a0\n","comment_id":"22983","post_id":"6308","user_id":"34","parent_comment_id":"22763","creation_date":"Tuesday, May 17, 2016 - 19:45","group_id":"0"}},{"node":{"title":"Thanks for sharing the study.","content":"\nKeep it up and stay safe, Anna!\n","comment_id":"22982","post_id":"6199","user_id":"32","parent_comment_id":"22964","creation_date":"Tuesday, May 17, 2016 - 16:46","group_id":"0"}},{"node":{"title":"Food enterprise at LOTE6.","content":"\nWill keep the LOTE6 idea in mind, great one!\nI think our future Open Clinic, in the form of which it can come out as our dream\u00a0spinoff from\u00a0OpenCare,\u00a0will have a large food component to it.\nWell, we never had an explicit conversation about food on edgeryders. In and of itself it's not actionable:\u00a0everyone eats, a lot of people love it period. But because it can become an instrument of sorts\u00a0it\u00a0tends\u00a0to pop\u00a0up in conversations where you wouldn't expect it. It's a real resource:\u00a0available, comes in\u00a0handy and yet underpins\u00a0complex relations. Moreover, if we think in terms of\u00a0food enterprises around care - should we ever decide to support one (maybe a project in the making) - they already have\u00a0a higher degree of sustainability embedded in it than most projects. \u00a0\n","comment_id":"22981","post_id":"6300","user_id":"32","parent_comment_id":"22979","creation_date":"Tuesday, May 17, 2016 - 16:26","group_id":"0"}},{"node":{"title":"Brilliant","content":"\nThis sounds like a fantastic project!\nPerhaps we could encourage them to get involved with the (potential) Food on the Edge section of LOTE6?\nIt's really interesting seeing the ways in which food\u00a0culture is\u00a0feeding into the OpenCare project. It almost seems like the 2 areas are symbioticly linked.\n","comment_id":"22979","post_id":"6300","user_id":"6559","parent_comment_id":"22975","creation_date":"Tuesday, May 17, 2016 - 15:03","group_id":"0"}},{"node":{"title":"Need to think","content":"\nHi Pauline,\nThis definitely resonates with me. I realy want to share my thoughts on this with you, but i need some time to think about how best to structure them.\nI thought i'd say thank you for sharing first and then respond in a day or 2.\nAlex\n","comment_id":"22978","post_id":"6388","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:56","group_id":"0"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"5954"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"438"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"5954"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"4260"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"5954"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"438"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"438"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"4260"}},{"node":{"title":"Reddit conversation: \"Check in: How are you this week?\"","content":"\nFor inspiration check the brief here on the right:\u00a0https:\/\/www.reddit.com\/r\/depression\/comments\/4j46cz\/weekly_check_in_how_are_you_this_week\/\u00a0\nI especially liked this:\nOur focus is on\u00a0support rather than \"fixes\". If you are looking for a more solution-oriented community, check out\/r\/getting_over_it\/\u00a0or\u00a0\/r\/GetMotivated.\u00a0or\nDo not post or respond with:\n\n\"Tough love\" of any description.\nGeneral uplifting or \"it gets better\" messages.\u00a0Encouragement is\u00a0not\u00a0helpful unless it integrates real, personal understanding of the OP's feelings and situation.\nAnything explicit or inciting related to suicide or self harm.\nClaims about the efficacy of any treatment or self-help strategy\u00a0including religion.\n\nThinking about our\u00a0OpenCare\u00a0brief in the making, or Pauline & Omri's\u00a0project design: we need to\u00a0signal the rules of the\u00a0space somehow in order to build trust that the person sharing is in the right space:\u00a0if it's for\u00a0peer support vs if it's\u00a0a project\/solution\u00a0space etc.\u00a0\n","comment_id":"22977","post_id":"6390","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"4260"}},{"node":{"title":"Not so much difference","content":"\nHi Tomma,\nThank you so much for sharing this. It's fascinating to see that there isn't a huge difference between the way people react to their spaces in an official camp and an unofficial camp like the Calais 'Jungle'.\nNoone ever likes the food that is provided.\nAre residents allowed out of the camp during the day? Are they allowed to bring anything they want back in with them? Or are they basically in detention?\nBecause if the can leave and bring anything back in then why not provide a space nearby where they can come and collect donated items, tools etc in exchange for doing something else (e.g. cooking food for a cafe, running a cafe, teaching arabic, sharing their culture etc)\nAlex\n","comment_id":"22976","post_id":"6389","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 14:24","group_id":"0"}},{"node":{"title":"Conflict Kitchen project","content":"\nThis is a\u00a0takeout\u00a0restaurant in Pittsburgh\u00a0cooking food from countries with which the US is in conflict. What seems to be really great is that for the time dedicated to a country they run a whole campaign gathering\u00a0research,\u00a0interviews,\u00a0events, workshops like\u00a0virtual cooking lessons\u00a0and from what I could see also\u00a0debunking American\u00a0media myths.\nIt's an interesting angle to the food - culture- public art, and probably why they're still running after 5 years.\u00a0Here's their website should you want to be inspired:\u00a0http:\/\/conflictkitchen.org\/\n","comment_id":"22975","post_id":"6300","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 13:38","group_id":"0"}},{"node":{"title":"The tool collection should not be difficult, but..","content":"\n..do you think you could get\u00a0permission?\u00a0\nAnother think that you might consider was\u00a0pointed out by Alex (volunteer\u00a0in Calais\/ Dunkirk camps)\u00a0in a response to Milan's similar efforts: \"My suggestion is first\u00a0to ask them how you can help, rather than guessing. We talk to community leaders on the camp every 2 weeks and ask for suggestions so we can improve our processes\" \u00a0That conversation is here,\u00a0should you wish to exchange ideas.\nVery excited to see you guys doing so much practical research, keep it up!\n","comment_id":"22974","post_id":"6389","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 17, 2016 - 13:14","group_id":"0"}},{"node":{"title":"Community Garden","content":"\nHey Dennis,\nthere is a community garden\u00a0called Himmelbeet in Wedding that might be an interesting project for you to check out! Volunteers can just come\u00a0in during the opening hours and just see what kind of work there is to do - usually always something, from gardening to building stuff to preparing workshops. They have alot of projets going on and would be more than happy to talk to you,\u00a0I am sure.\u00a0I believe that some refugees work there too, or would be very welcome at least!\u00a0\nActually, I just started\u00a0volunteering there some weeks ago. For their Spring Opening Fest, I helped set up and supervise a little stall for people to make Stockbrot. At first, it was us preparing the bread for the guests and then they would cook it over the fire. However,\u00a0some of the refugees that were there were very interested in the process, so I started to teach them how to make it. Turns out one of them had been a baker in Syria, which was great, because he showed me some tricks on how to handle the dough more easily\u00a0and he could translate to the others the different types of wheat and seeds we had laid out to sprinkle on the dough.\u00a0Others were preparing more sticks or making wood fore the fire. Soon, all the 'volunteers' were the ones sitting around the fire and eating bread. Hope this helped\u00a0you a little!\n","comment_id":"22939","post_id":"6259","user_id":"8602","parent_comment_id":"22869","creation_date":"Monday, May 16, 2016 - 16:26","group_id":"0"}},{"node":{"title":"Why has peacemaking in the Karabakh conflict failed? ","content":"\nAnswering that question requires examining the roots of the conflict, the context in which it arose, and the factors that have kept it going. This study offers some frank evaluations of the efforts made over the years to resolve the conflict, some of which have not been discussed publicly except in the partisan narratives of one side or the other.\n","comment_id":"22964","post_id":"6199","user_id":"6028","parent_comment_id":"0","creation_date":"Monday, May 16, 2016 - 14:51","group_id":"0"}},{"node":{"title":"Thank you for your kind words","content":"\nThis\u00a0talk is very intersting\u00a0\n","comment_id":"22949","post_id":"6363","user_id":"8675","parent_comment_id":"22855","creation_date":"Saturday, May 14, 2016 - 16:08","group_id":"0"}},{"node":{"title":"Thanks for sharing","content":"\nYour insights are important to team JUS.\n","comment_id":"22948","post_id":"6363","user_id":"8675","parent_comment_id":"22865","creation_date":"Saturday, May 14, 2016 - 15:44","group_id":"0"}},{"node":{"title":"Planned","content":"\nWe\u00b4ll do a meeting on monday with 4 Germans and 4 people that don\u00b4t speak proper German yet.\nAnd we are about to get in contact with the volunteer agency of Berlin to find Germans.\n","comment_id":"22947","post_id":"6362","user_id":"8590","parent_comment_id":"22923","creation_date":"Saturday, May 14, 2016 - 14:17","group_id":"0"}},{"node":{"title":"Probably Nadia","content":"\nIt's not me.\u00a0\nThe reason should be that we need to populate channels in order to make it easier for people to browse the website and retrieve older content by looking at topics.\nNow, the solution I see to not mix up non-OpenCare content with OpenCare\u00a0is:\u00a0if there is a way to assign older posts to groups different than Op3nCare, but still convert them into challenge responses (to benefit from channels assigned), that would be ideal!\n","comment_id":"22944","post_id":"6380","user_id":"32","parent_comment_id":"22941","creation_date":"Saturday, May 14, 2016 - 12:38","group_id":"5954"}},{"node":{"title":"Probably Nadia","content":"\nIt's not me.\u00a0\nThe reason should be that we need to populate channels in order to make it easier for people to browse the website and retrieve older content by looking at topics.\nNow, the solution I see to not mix up non-OpenCare content with OpenCare\u00a0is:\u00a0if there is a way to assign older posts to groups different than Op3nCare, but still convert them into challenge responses (to benefit from channels assigned), that would be ideal!\n","comment_id":"22944","post_id":"6380","user_id":"32","parent_comment_id":"22941","creation_date":"Saturday, May 14, 2016 - 12:38","group_id":"5954"}},{"node":{"title":"Hi Alberto,","content":"\nHi Alberto,\nsorry for taking so long to reply. You make an important point! This issue works the other way around as well of course, there has to be a mutual understanding between care givers and care takers.\nDo you know anyone who might know how the situation is in the context of refugees?\u00a0I believe the project group of @Cindy, @MarieScheurer and @HoneyMk\u00a0have been investigating some of the communicative\u00a0issues between refugees and official institutions in Germany. Maybe hearing other peoples experiences might be\u00a0helpful for you,\u00a0Group Chat Mate?\n","comment_id":"22935","post_id":"6242","user_id":"8602","parent_comment_id":"22454","creation_date":"Friday, May 13, 2016 - 21:35","group_id":"0"}},{"node":{"title":"Long waiting periods for getting help","content":"\nOne important point I forgot to stress: actually getting help took long. Admitting to myself and to my friends that I had a problem took a great deal of energy, but nothing compared to the procedure that dragged on for months before I was able to get treatment.\nAs a first contact, the university counsellor\u00a0was a good help. However, the number of appointments one\u00a0can have with them\u00a0is very limited. Getting a place in therapy is difficult. There are annoying regulations in order to get the insurance to cover it. I had to be rejected at 10 different therapists until I found someone who still had a space. I was lucky that we were a good match, but others search for a long time\u00a0until they\u00a0find someone they feel comfortable with.\nI saw\u00a0a doctor too, which did some tests to see that\u00a0there are no physical causes to my symptoms. And then some more tests. And of course, appointments were only to be had 6 weeks in advance. The same went for seeing a psychiatrist about medication.\u00a0\nWhen you are depressed and little things like getting out of bed take you a seemingly impossible amount of energy,\u00a0this effort is incredibly draining and frustrating. It seems like an insurmountable pile of hoops to jump through. There is this turning\u00a0point where you decide\u00a0that something needs to happen, that you need some kind of help now, because you don't know what to do anymore,\u00a0and then you are told that the next possible appointment is in 8 weeks.\u00a0\nWhat am I going to do until then? Is it possible to somehow\u00a0improve this process? What kinds of\u00a0other temporary support structures might there be\u00a0that could help\u00a0people in distress?\u00a0\n\u00a0\n","comment_id":"22943","post_id":"6354","user_id":"8602","parent_comment_id":"0","creation_date":"Friday, May 13, 2016 - 21:33","group_id":"0"}},{"node":{"title":"Associating old stuff to the Op3ncare community group","content":"\n@Noemi, I assume this is you associating older posts about care to the group. This is of course OK. But some of them seem to be quite theoretical (example). Can you write here some remarks about your \u00a0criteria for doing so? The number of people involved in the conversation almost doubled since yesterday, with people like Irene Lanza, SARCHA, Emiliano Fatello, FreeLab...\n","comment_id":"22941","post_id":"6380","user_id":"34","parent_comment_id":"0","creation_date":"Friday, May 13, 2016 - 16:46","group_id":"5954"}},{"node":{"title":"Associating old stuff to the Op3ncare community group","content":"\n@Noemi, I assume this is you associating older posts about care to the group. This is of course OK. But some of them seem to be quite theoretical (example). Can you write here some remarks about your \u00a0criteria for doing so? The number of people involved in the conversation almost doubled since yesterday, with people like Irene Lanza, SARCHA, Emiliano Fatello, FreeLab...\n","comment_id":"22941","post_id":"6380","user_id":"34","parent_comment_id":"0","creation_date":"Friday, May 13, 2016 - 16:46","group_id":"5954"}},{"node":{"title":"Hi Noemi,","content":"\nHi Noemi,\nagain, sorry for taking so long to reply. I'll\u00a0try\u00a0to be better with\u00a0catching up on comments (somehow I don't seem to be getting notifications when somebody comments my post and then I forget very quickly).\nThank you for your input! As you might have seen, our project group\u00a0have now settled on a slightly different\u00a0topic as part of the mental and spiritual resilience challenge.\u00a0Still, I think we wilI keep these reflections in mind, particularly the idea of smart villages. I'm not sure I quite understand how it works yet, I'll have to look into it.\nYet too often our jobs starve us of what is most precious\u200a\u2014\u200athe time and space to express who we truly are\u200a\u2014\u200asocial, curious, playful and purposeful humans. [..].\u00a0We believe that there is a growing demand for smart villages where we can design our ideal balanced lives. Places where we can live in harmony with nature. We can create a safe and happy home for our families. And we don\u2019t have to sacrifice our careers and dreams to make this happen.\nWe are still a little unsure what direction we are headed in, but\u00a0I do think this relates\u00a0to the question of emotional wellbeing and the starting point that @NeleG set with her post on the pressure to function and succeed at the risk of burnout, as well as @Omri_Kaufmann's thoughts on who we share our feelings with and how we might facilitate sharing with people close to us - if that is 'family' by any definition or something else.\u00a0\n","comment_id":"22938","post_id":"6243","user_id":"8602","parent_comment_id":"22560","creation_date":"Friday, May 13, 2016 - 15:53","group_id":"0"}},{"node":{"title":"Hi Luija,","content":"\nHi Luija,\nsorry for not replying so long. Thank you for your perspective, it was very enlightening! We studied 20th century China quite rigorously in school, so I had some idea\u00a0of the political, social and technological developments, yet as an expat I always felt\u00a0very much isolated from the life reality\u00a0of the\u00a0locals.\u00a0As I said, I never really had much contact with the 'real', 'authentic' Chinese medical system, because there were so many reservations about it. The issues that we encountered\u00a0in those clinics that specialized on Westerners sound harmless compared to what you talked about! Do you know if there is anything being done now to improve the system?\u00a0\n","comment_id":"22937","post_id":"6242","user_id":"8602","parent_comment_id":"22595","creation_date":"Friday, May 13, 2016 - 15:32","group_id":"0"}},{"node":{"title":"Yes I think Alex, Yara and Mousab might know?","content":"\nping @Alex Levene , @Yara Al Adib , @Mousab Alshikh \u00a0...maybe you have some experience dealing with Belgian institutions around health stuff?\n","comment_id":"22936","post_id":"6242","user_id":"45","parent_comment_id":"22935","creation_date":"Friday, May 13, 2016 - 15:27","group_id":"0"}},{"node":{"title":"Hi Noemi,\u00a0","content":"\nHi Noemi,\u00a0\nsorry for taking so long to get back to you. I have to admit that I can't exactly tell you what kind of language was being used in the Chinese medical system - mainly because the only\u00a0contact I myself had with Chinese doctors was always in the context of institutions that somewhat\u00a0catered\u00a0specifically to Westerners. Being a child, I wasn't quite so aware of it, but from what I remember hearing in\u00a0conversations between my parents and their expat friends, there was a sense of fear and mistrust in the Chinese system. The cultural communications issue was one worry, but there were also reservations about hygiene and safety standards. In general,\u00a0the\u00a0quality of medical care seemed to be\u00a0perceived\u00a0poorer\u00a0than the Western methods. However, I am in no position to judge if these were\u00a0actually justified assumptions or if it was more a matter of perception.\n","comment_id":"22934","post_id":"6242","user_id":"8602","parent_comment_id":"22417","creation_date":"Friday, May 13, 2016 - 15:11","group_id":"0"}},{"node":{"title":"Emotional Health","content":"\nI think the wording is a good point. Mental health\u00a0to me still carries very strong connotations that makes it an intimidating issue to deal with. It's very interesting to see what kind of care and support structures are available\u00a0out there,\u00a0how they are perceived and what causes what kind of people to approach them (or not). The note you made about it being easier to share something anonymously is also something we'll keep in mind and explore further.\nI'm looking forward to the online discussion on Monday, thank you for setting it up!\n","comment_id":"22931","post_id":"6354","user_id":"8602","parent_comment_id":"22879","creation_date":"Friday, May 13, 2016 - 14:38","group_id":"0"}},{"node":{"title":"Oh not a big event, just letting a diverse group of people know","content":"\nI just thought it would be a nice way to meet new people and just hang out in a natural, uncontrived way if people can easily invite their friends...\n","comment_id":"22923","post_id":"6362","user_id":"45","parent_comment_id":"22922","creation_date":"Friday, May 13, 2016 - 11:10","group_id":"0"}},{"node":{"title":"We were thinking about a small group","content":"\nHey Nadia,\nthank you for your post!\nWe were wondering if it\u00b4s not probaply the right way to bring a small group of people together to provote interaction between people of dirrerent mothertounge and to prevent that groups stay together in their comfort zone. We\u00b4ll probaply do it on monday.\nBut I\u00b4m curious, what is your\u00a0idea behind setting up a big event?\nBest regards\nMarie\n","comment_id":"22922","post_id":"6362","user_id":"8590","parent_comment_id":"22900","creation_date":"Friday, May 13, 2016 - 10:29","group_id":"0"}},{"node":{"title":"A gradient","content":"\nDisability is a gradient. Some humans can run marathons in under three hours. Me? No. Does it mean I am disabled? No. But if you could run a marathon in under three hours, and then for some reason (age, lack of training) you lost that ability, you would feel diminished.\u00a0\nMoreover, disability is multidimensional.\u00a0Is Stephen Hawking disabled? Yes, in a way. His body is weaker than mine. But if you look at brains, fame, achievements... \u00a0who's the disabled guy here?\nYet another example of when labels do not make sense.\u00a0\n","comment_id":"22917","post_id":"6376","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, May 12, 2016 - 20:36","group_id":"0"}},{"node":{"title":"When? Maybe Create a Meetup so we can push it out?","content":"\nHi Marie,\nthis looks interesting, I am back in Berlin on the 17th-27th and would certainly join you if you did it on any day except for the 18th when I am at an all day meeting.\u00a0\nTo get more people on board I suggest creating an event on the Meetups page, and we can use social media to let Berlin know about it :so more people join :)\nThe instructions for how to add another event to the page are at the bottom. Ask if you need help!\u00a0\n","comment_id":"22900","post_id":"6362","user_id":"45","parent_comment_id":"22864","creation_date":"Thursday, May 12, 2016 - 12:31","group_id":"0"}},{"node":{"title":"Stealth mode","content":"\nNo, other\u00a0examples of care services that rewire themselves so as to (1) establish themselves as \"owned\" by the community and (2) bypass stifling regulation.\u00a0\n","comment_id":"22899","post_id":"6304","user_id":"34","parent_comment_id":"22897","creation_date":"Thursday, May 12, 2016 - 12:28","group_id":"0"}},{"node":{"title":"Insight?","content":"\nI'm not familiar with the project and do not really immiedetly see what my contributon should be. References to previous insights on how private services\u00a0are more customer oriented than public?\n","comment_id":"22897","post_id":"6304","user_id":"6412","parent_comment_id":"0","creation_date":"Thursday, May 12, 2016 - 12:18","group_id":"0"}},{"node":{"title":"Playing with naming","content":"\nWell language is powerful, it carries and enforces assumptions even without someone intending to. It seems like there are few\u00a0words we have as society\u00a0to express care for those\u00a0assumed\u00a0to need it more than others - disability\/ handicap\/ disease. \u00a0\nMaybe they don't need more care than others,\u00a0as we are all disabled in a way.\u00a0We\u00a0all fall under categories of the state anyway and at some point need \"special\" considerations -for example student discounts carry the\u00a0same type of distinction: you are a student, therefore you have less money, therefore you need extra help to access some services. Yet we call it \"discount for\u00a0students\" not discount for poor students.\nWill keep thinking about this, and good luck with your design @Moriel.\n","comment_id":"22895","post_id":"6376","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, May 12, 2016 - 09:53","group_id":"0"}},{"node":{"title":"Working on it","content":"\nI've asked for them to get me some links to documents that show the link between excercise and positive mental heath.\nThey're going to get me some internet links so i can share the here\n","comment_id":"22890","post_id":"6339","user_id":"6559","parent_comment_id":"22872","creation_date":"Wednesday, May 11, 2016 - 17:03","group_id":"0"}},{"node":{"title":"Wording issues.","content":"\nThis doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally.\u00a0\n@Moushira suggested yesterday in our community call that engaging people to share their issues shouldn't be put under headers of \"mental health\" but under something more like \"emotional health\". Similarly, \u00a0@Thom_Stewart is setting up an initiative for any person in distress - clinical or not; mental per se of not. I think this kind of inclusiveness\u00a0can contribute to lowering the threshold as mentioned above.\nGuys, next Monday we are hosting an online\u00a0conversation about emotional care, feel free to join in at 4:30 PM.\nPS Pauline I loved emotionalbaggagecheck.com, what a sweet project! thanks for sharing it.\n","comment_id":"22879","post_id":"6354","user_id":"32","parent_comment_id":"22844","creation_date":"Tuesday, May 10, 2016 - 21:55","group_id":"0"}},{"node":{"title":"Can we learn more?","content":"\nThis sounds really cool, Alex. A free gym... next up, skateboard, team sports and whatever.\u00a0\nCan we know more about mental and social health effects?\u00a0\n","comment_id":"22872","post_id":"6339","user_id":"34","parent_comment_id":"22860","creation_date":"Tuesday, May 10, 2016 - 20:12","group_id":"0"}},{"node":{"title":"Imposed Boredom & The Autonomy to Act","content":"\nHi Everyone!\nThank you all for your responses! I'm afraid, I haven't yet caught up with the whole routine, so sorry for my impoliteness of answering late..\nWe (the project group I'm part of) have been visiting a refugee camp in Berlin and had the chance to get in touch with a number of the people there. It seems like most projects with refugees focus on families and children, whereas the young men are being left out.\nHow is the situation in other places? Has anyone made the same experiences? If that were the case, we would frame our research around working together with these young men.\n\nRight now, we're in contact with a group of Syrians, around 25-32 of age, who have given us insights on daily life in the camp but also daily life in Syria and we have spoken about the small moments that create the feeling of home.\n\nSince they are living in these rooms, which basically consist of for walls, no ceiling and four double beds, they themselves had already hacked the space in a way that would make their environment feel a bit more homey (or at least more practical).\n\nSeeing them already understanding the space and having the ideas to improve it, what more could they do and make, were they only given the material and the tools?\nBoredom and the feeling of not being able to progress seems to be the biggest problem, so they were welcoming the idea of getting active and being able to do something - anything - and when there's a result that is useful in their very situation, it's even better.\nAt this stage, it's not about practical matters anymore, but it seems more like a search for emotional autonomy.\n","comment_id":"22869","post_id":"6259","user_id":"8592","parent_comment_id":"0","creation_date":"Tuesday, May 10, 2016 - 19:37","group_id":"0"}},{"node":{"title":"\"Some days are harder\"","content":"\n\"Some may call it depression. Let\u2019s say I am wary about medicalisation of the human condition, so to me it is just sadness.\nWhen I was younger these dips were more profound. Debilitating even. At some point a psychiatrist prompted me to take medication. I refused, opting instead to deal with what I thought might be the root causes\u2026.by\u00a0changing my profession, lifestyle and social environment.\nEventually\u00a0I developed some resilience towards these\u00a0inexplicable bouts of sadness. I would channel the nervous energy into doing meaningful work, and supporting the efforts of others in trying to do something that matters to them. With hindsight it has been a better choice for me than spending a fortune I don\u2019t have on having a shrink try to figure out what is the matter with me\u2026and how to fix it.\nLast week, the sadness returned. This time I am unable to find solace in the work. I am unsure as to why. It is not dramatic and there is no cause for alarm. However, I\u2019ve noticed that the less time I spend on online, the better I feel. In part I think it is because\u00a0communication for work purposes and to stay in touch with people about whom I care increasingly happen in the same channels. Which is not sustainable in the long run. So I am leaving Facebook, Twitter and linkedin for now. I will not cancel my accounts, but will not be checking them on a regular basis or keeping them updated.\nIf you wish to stay in touch with me you have several choices:\n1) To be kept up to date with information about Edgeryders, unMonastery and future projects and opportunities I am involved in building, subscribe to Nadia at Work.\n2) If you are interested in reading me on more general topics like culture, tech, politics, art, religion, science, travels and life in general, subscribe to \u00a0News from Nadia.\n3) If you want to hang out you can always call me on skype (my alias is: niasan) or come visit me in Brussels, where I now live.\nI do hope you will choose to stay in touch one way or another. To those of you who choose otherwise, thank you for the time we have spent together- I do wish you all the best and hope our paths cross again sooner rather than later.\nWith love,\nNadia\"\n","comment_id":"22865","post_id":"6363","user_id":"45","parent_comment_id":"22862","creation_date":"Tuesday, May 10, 2016 - 17:30","group_id":"0"}},{"node":{"title":"LET\u00b4S TRY IT OUT!","content":"\nWhat about a picknick?\neverybody could bring something to ear \/ drink\nwill interaction take place:)?\n","comment_id":"22864","post_id":"6362","user_id":"8590","parent_comment_id":"0","creation_date":"Tuesday, May 10, 2016 - 17:21","group_id":"0"}},{"node":{"title":"New Design Question!!!","content":"\nHOW CAN WE MOTIVATE GERMANS AND NON-GERMANS TO GO ON ACTIVITIES TOGETHER FOR IMPROVING THE SPEAKING OF GERMAN AND TO MAKE INTEGRATION EASIER?\n#1Reasearch with Non-Germans:\n-having a hard time to make German friends\n-are not brave enough to start a contact\n-think that the language is the biggest barrier\n-bad luck with tandem partners: they are not easy to find for every language \/ they don\u00b4t arrive at the appointment\n-high interest in small activities together with a German person to improve German and to lose fear of socialisation\n-they are having a better time learning German if they live together with Germans \/ it\u00b4s easier to get known to eaven more Germans if you already know even one\n-integration as a result of speaking German and speaking German as a result of integration \/ no integration as a result of not speaking German and not speaking German as a result of no integration\n\u00a0\n#Research with Germans:\n-if they have time they would probaply spend it with a person who wants to learn German\n-if they would get small gifts \/ rabatt \/ coupons they would be motivated to take foreign people to their private activities\n-proposed activities would be visit of zoo, museums, city trips, sports, going outside, taking a walk, workshops etc.\n\u00a0\nFURTHER PLANNED STEPS \/ OPEN QUESTIONS:\n-how can we define the group of people?\n-which activities are reasonable?\n-where do we catch the people?\n-what motivates Germans?\n-is the volenteer center \/ language school \/ a bar \/etc.\u00a0a good place?\nHappy for comments, ideas, experience etc.!!!\nSunny regards, Marie\n\u00a0\n\u00a0\n","comment_id":"22863","post_id":"6362","user_id":"8590","parent_comment_id":"0","creation_date":"Tuesday, May 10, 2016 - 16:43","group_id":"0"}},{"node":{"title":"Repiblishing","content":"\nWe would love to hear it unless you are uncomfortable.\nJUS\n","comment_id":"22862","post_id":"6363","user_id":"8675","parent_comment_id":"22851","creation_date":"Tuesday, May 10, 2016 - 15:41","group_id":"0"}},{"node":{"title":"Fitness","content":"\nI have been talking to someone at Calais who has set up a free community gym at the Calais camp.\nIt works really well for mental health, engaging young men and encouraging interaction and participation.\nPerhaps something like this would be worth exploring?\n","comment_id":"22860","post_id":"6339","user_id":"6559","parent_comment_id":"22829","creation_date":"Tuesday, May 10, 2016 - 14:09","group_id":"0"}},{"node":{"title":"All about humans","content":"\nGreat sharing, JUS team and @Omri Kaufmann in particular!\u00a0\nI am out of my depth: I have been sad but never depressed, exhausted but never burnt out. I have emotions, but they never seem to become medical conditions\u00a0somehow. Lucky me.\u00a0\nBut many people seem to think it's the human touch that makes the difference in care. Even the best designed sofa will not make you any less lonely.\u00a0\nThe point is made (towards 12.00) by @Yara Al Adib in this video, since you want to be inspired you will probably like it!\u00a0\n\n\n\n\n","comment_id":"22855","post_id":"6363","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, May 10, 2016 - 12:56","group_id":"0"}},{"node":{"title":"Caring for one another in death and in life","content":"\nHi Omri and Pauline,\nthis is an interesting question. A couple of years ago I met someone whom I hadn't seen in a long time, a university pal. We had a long conversation about death because his Dad was unwell. Without thinking much of it I wrote a post about our encounter here. Check out the comments, you may find them of interest.\nWhen younger I found it quite difficult to even acknowledge feelings let alone talk about them. Especially not if it was a space where I knew I would be meeting the same people again and again. Something about not being able to shed skin and then move on made it feel like a trap. Then something snapped last year. I felt unable and unwilling to not be sad and let others know what was going on and what I needed to be ok + how they could interact with me. I unpublished it from my personal blog, but if it's helpful to you I can republish it here. Let me know.\n\u00a0\n","comment_id":"22851","post_id":"6363","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, May 10, 2016 - 12:25","group_id":"0"}},{"node":{"title":"sehr gut","content":"\n:)\n","comment_id":"22848","post_id":"6363","user_id":"8675","parent_comment_id":"22845","creation_date":"Tuesday, May 10, 2016 - 11:55","group_id":"0"}},{"node":{"title":"JUS Team","content":"\nHere are the links to @NeleG original post and my own experience on sharing feelings\nhttps:\/\/edgeryders.eu\/en\/on-being-a-self-entrepreneur\nhttps:\/\/edgeryders.eu\/en\/jus-sharing-is-scary\n","comment_id":"22845","post_id":"6363","user_id":"8602","parent_comment_id":"0","creation_date":"Tuesday, May 10, 2016 - 11:27","group_id":"0"}},{"node":{"title":"Hi Noemi,\u00a0","content":"\nHi Noemi,\u00a0\nthanks for getting back to me. I definitively consider myself lucky and realize that I have a very strong support system. The thing that struck me was that even in my comparatively 'good'\u00a0situation, it was so difficult for me to communicate my feelings.\u00a0For me, this\u00a0was a huge added pressure and kept\u00a0me from getting help\u00a0for a long time.\u00a0In our project group, we are investigating how young people, particularly in creative professions\/fields of study, deal with issues of mental well-being, who they share their feelings with, or\u00a0why they don't.\u00a0\nAs we are still in the research phase, I actually wanted to stay away from thinking of a very specific solution already. There is\u00a0a similar\u00a0site called emotionalbaggagecheck.com, where you can either submit your thoughts anonymously or help someone who submitted a text by sharing a song and some kind words.\u00a0The platform I was thinking of was more an idea of improving the communication between affected people, so that there is a lower threshold of reaching out for support when you feel bad.\u00a0I was hoping to hear what experiences other people have had, what sort of stressors they struggle with\u00a0and how they handle this. This doesn't have to be a 'full-blown' mental illness, but any thing that has weighed on them emotionally.\u00a0\nThis was related to @NeleG post about how we are under so much pressure to function and to succeed, that we risk our emotional (and as a result, often also our physical)\u00a0well-being. A question we were asking ourselves as a group was how to challenge the perception or stigma on\u00a0mental health issues and perhaps encourage people to be more open and share their feelings, especially with their loved ones.\u00a0\n","comment_id":"22844","post_id":"6354","user_id":"8602","parent_comment_id":"22843","creation_date":"Tuesday, May 10, 2016 - 11:17","group_id":"0"}},{"node":{"title":"You're really lucky","content":"\nWhen I started reading your story I was already hearing the usual remarks people give - you know the worst thing to tell to someone who is depressed is \"pull yourself\u00a0together\"; or \"you have everything to be happy\".\nYet it seems your close friends and family did find a way to reach out, however ineffective\u00a0or patronising,\u00a0as any advice can\u00a0be after all, which is not to blame.\nWhat made you share this, @Pauline? What design do you have in mind for the mutual understanding platform you see as a solution? One initiative I came across while researching the web for the mental health debate in OpenCare is BlueHackers - they have an\u00a0IRC channel\u00a0they use where anyone can drop in for a random conversation.\u00a0It could be that sharing with strangers is sometimes easier than with closer people, so you could be on to something. But maybe you're not thinking of online platform?\n","comment_id":"22843","post_id":"6354","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 10, 2016 - 10:34","group_id":"0"}},{"node":{"title":"Hodges' model","content":"\nHello Alberto,\nThanks for your interest and response. Ah! It sounds like you have tried to access\u00a0the old website p-jones.demon.co.uk which was valid from 1998 up to last summer when Demon closed as an ISP.\nSorry about that. My current studies will include posting some introductory information. I've just organised new hosting.\nI'd be happy to try to answer questions and\u00a0will add a note on my blog \/ and to the papers\u00a0I have re. the expired website.\nKind regards,\nPeter Jones\n\u00a0\n","comment_id":"22837","post_id":"6352","user_id":"8721","parent_comment_id":"22833","creation_date":"Tuesday, May 10, 2016 - 01:13","group_id":"0"}},{"node":{"title":"Similar problems","content":"\nI have found the same problems in Calais. Support programs\u00a0aim\u00a0at engaging and helping children and women, but\u00a0young men, who make up around 90% of the camp, are more difficult to engage.\nIt's true that we see\u00a0mental health issues on the camp, including depression. These people\u00a0are currently not\u00a0supported through any projects that i am aware of. We are also starting to see a growth in\u00a0drug dependency amongst long-term residents on the camp,\u00a0which\u00a0is worrying.\nWe also struggle with the fact that many of the men on camp do not see the camp, or France, as their final destination. So\u00a0it is difficult to get them to engage in longer-term initiatives in Calais. We have some success with language classes in\u00a0English and French.\u00a0Also,\u00a0construction projects are popular activities.\nLanguage exchange seems to be the best way to start engagement, after that i think it is food. Perhaps a community kitchen where they cook for you instead of always receiving support. My days at the camp are always full of offers to eat and drink food prepared by\u00a0the residents.\nMy suggestion is first\u00a0to ask them how you can help, rather than guessing. We talk to community leaders on the camp every 2 weeks and ask for suggestions so we can improve our processes. They tell us how we can help them as much as we make our own decisions.\n","comment_id":"22834","post_id":"6339","user_id":"6559","parent_comment_id":"22829","creation_date":"Monday, May 9, 2016 - 21:35","group_id":"0"}},{"node":{"title":"Welcome, Peter! ","content":"\nHello @pjones, welcome to Edgeryders. I checked out briefly your blog: congratulations, you really are very active!\u00a0\nBut where\u00a0is the model? I read your 2004 paper: I am a non-professional and\u00a0may simply lack the knowledge\u00a0to process it, but what it looks to me is that you are discussing\u00a0a model that was presented somewhere else. There is a link at the end of the paper, but it points to a site no longer active.\u00a0\nWould you have a \"Hodges model for dummies\" somewhere?\nPing @markomanka, he'll know a lot more than me.\u00a0\n","comment_id":"22833","post_id":"6352","user_id":"34","parent_comment_id":"0","creation_date":"Monday, May 9, 2016 - 20:55","group_id":"0"}},{"node":{"title":"Eh :-)","content":"\nInsomma, non stai pi\u00f9 hackerando la sedia a rotelle, ma\u00a0te stesso.\u00a0Diventando tu stesso un maker, sposti la tua disabilit\u00e0 da condizione immutabile in problema da risolvere. Se \u00e8 cos\u00ec, che dire, chapeau.\nPer\u00f2, senti: nel mondo maker\u00a0anche i viaggi\u00a0interiori si fanno smanettando su progetti, no?\u00a0In smanettamento veritas. E bisogna pure smanettare su qualcosa! Mi chiedevo solo se state ragionando di cosa fare nelle prossime settimane.\u00a0\n","comment_id":"22832","post_id":"6341","user_id":"34","parent_comment_id":"22822","creation_date":"Monday, May 9, 2016 - 20:39","group_id":"0"}},{"node":{"title":"Great discussion guys!","content":"\n@steelweaver, @Noemi, I think you are zeroing in on something important.\u00a0\nHere's what I'm reading.\n\nLike other people in the space we are calling open care (small letters: the concept, not the project), you, @steelweaver, are rewiring care services as community-driven. Your way to do so is the donation model. The Helliniko crowd's is the refuse to incorporate.\u00a0What different ways have in common is this: they build trust and style these services as community-driven, and the communities as the owners. They also sidestep regulation, perceived as stifling. @teirdes\u00a0and @markomanka are full of stories on why this perception is at least partially correct. @Lakomaa could probably offer additional insights.\nSuch\u00a0radical thinking frees up creativity and enable bottom-up emergence of more care in society.\nHowever, it also means you guys are very vulnerable. Noemi is right on the money: if an \"Uber for health\" were to emerge, it would be sued into a smoking hole at the first signs of scaling. Which makes me think that\u00a0not\u00a0scaling is a better solution for survivability of open care: sueing thousands of small initiatives is harder and more costly than going for the one Uber. Hmmm.\nBut Noemi is proposing regulation as some kind of shelter for these initiatives. Would this work? To a first approximation, I am doubtful. Uber has access to legal advice, and they undoubtedly ran checks on their model before going live. But then they get sued. The sueing party claims that something in that model should be interpreted like something else already in the legal system. For example \"an Uber driver is like the employee of a taxi company\" or \"if you rent out your spare room on Airbnb you become a hotel\". If it wins the case (as it tends to do), then the sentence becomes a precedent. European version: lobbyists get the law change the way they want it. So, these innovative, disintermediating solutions start off as legal, but then they are made illegal as they begin scaling.\u00a0\n\nAll of which is pretty depressing, I must admit. Hope you guys can contradict me :-)\n","comment_id":"22831","post_id":"6304","user_id":"34","parent_comment_id":"22824","creation_date":"Monday, May 9, 2016 - 20:32","group_id":"0"}},{"node":{"title":"Hey Noemi","content":"\nsorry for my late response and thanks for yours! Our group met today and we discussed our new challenges. Last week we applied for a contest wich is about encunters between refugee migrants and locals arround karl-marx-stra\u00dfe in berlin. we are still waiting for feedback. what we want to focus on as a target group are alone travelling men because we learned, that they don\u00b4t get enouth attencion or the offers are just not fitting good enough. They tend to have a loss of orientation after their jurney during their long waiting-times. Tomorrow we are going to make interviews with lot of people and hopfully get new input for design tasks. Stay tuned :)\nMilan\n","comment_id":"22830","post_id":"6339","user_id":"8591","parent_comment_id":"22800","creation_date":"Monday, May 9, 2016 - 18:19","group_id":"0"}},{"node":{"title":"Thanks Alex","content":"\nI\u00b4m very glad to see you responding to our first insight. I\u00b4m sorry to anwer this late, still getting used to edgeryders. Indeed your knowledge arround these other Migrant Camps could be very helpful. In our research we learned, that there are a lot of programs an projects for families but few for alone travelling men. Also these mostly syrian men tend to fall in a hole after travelling and having a stressful time. Do you know these problems? What do you think how we can empower them or get them focused on new goals? Are there specific challenges the migrants in Calais or Dunkirk are facing?\nMilan\n","comment_id":"22829","post_id":"6339","user_id":"8591","parent_comment_id":"22795","creation_date":"Monday, May 9, 2016 - 17:50","group_id":"0"}},{"node":{"title":"So some regulatory framework is needed..","content":"\nWhile building trust in the service while ofering affordability and humane treatment\u00a0is definitely a plus, the questions remains and it's for us to try to answer in the future looking at stories like yours (which is what OpenCare community essentially does): what happens when a number of such care services become available? We have great insights, yet risk running completely unprotected. The more they grow effective or meet a growing demand, the more attention they draw, the more concurential they become, the more they risk being antagonised by systems on more-or-less valid concerns. Uber\u00a0being exhibit A..\u00a0\n@markomanka maybe has more interesting insights as to minium criteria which can\u00a0make\u00a0health services like these legit from system's perspective.\n","comment_id":"22828","post_id":"6304","user_id":"32","parent_comment_id":"22824","creation_date":"Monday, May 9, 2016 - 15:57","group_id":"0"}},{"node":{"title":"Ways to get out of this?","content":"\nWhat a story, @Timothy_Daly. Thank you for sharing it with us, and welcome to Edgeryders and OpenCare, our research project.\u00a0\nThis really makes you wonder, reminded me of the Rosenhan\u00a0experiment.\nThe detail that most appealed to my Kafkaesque understanding of faceless institutions, was that the refusal to accept that he was mad was taken as evidence that he was still mad. Refusing to take the pills that made him heavy and slow and stupid was seen as proof that his sanity had still not returned. Now you just try to imagine regaining your mental balance under this kind of perverse authority.\nDo you have ideas on how to better the situation for someone like Dave? is a temp squat really doing anything good for him, or what would be a way to recovery that is dignifying? If you're involved in or know of systematic community efforts, do tell. \u00a0\nIf you're more into the research and observation: we're struggling to put together a\u00a0brief for stories about mental resilience, a set of questions that are\u00a0solution-oriented and not intimidate people to share things that after all are very private in an online environment. Help if this is something of interest to you?\n","comment_id":"22827","post_id":"6353","user_id":"32","parent_comment_id":"0","creation_date":"Monday, May 9, 2016 - 11:20","group_id":"0"}},{"node":{"title":"Stepping outside the commercial model","content":"\nHi @Noemi,\nWell, working on a donation basis was my nod to being a non-commercial entity, which (as far as I know) means the clinic is not subject to licensing - similarly to people who volunteer in hospices, addiction recovery centres etc.\nI am conflicted on this - on the one hand, I recognise that some degree of regulation of healthcare is probably desirable to avoid malpractice and protect patients (or at least it was desirable before networked reputation economies became a possibility - who knows what alternative models might be possible now?).\nOn the other hand, I was certainly struck by the degree to which stepping outside the commercial model of delivery freed me up to do things differently.\nIt's also made it far easier to get 'buy-in' from the community so that they think of it as something that belongs to them, that they can collaborate with. The terms of interaction defined by our habits of commercial consumption go deep, and having some way to differentiate yourself from it seems very important in encouraging people to thnk and act differently.\n","comment_id":"22824","post_id":"6304","user_id":"1915","parent_comment_id":"22756","creation_date":"Saturday, May 7, 2016 - 12:52","group_id":"0"}},{"node":{"title":"Grazie Nadia! :-)","content":"\nGrazie Nadia! :-)\n","comment_id":"22823","post_id":"6341","user_id":"8523","parent_comment_id":"22809","creation_date":"Saturday, May 7, 2016 - 12:00","group_id":"0"}},{"node":{"title":"Nel corso della prima","content":"\nNel corso della prima sessione di co-design avvenuto lo scorso mercoled\u00ec presso WeMake nell\u2019ambito del Progetto OpenCare ho avuto modo di esplicitare due miei interessi particolarmente \u201ccomplessi\u201d, quali la mobilit\u00e0 e la residenzialit\u00e0 prevalentemente per le persone con disabilit\u00e0 fisico motorie, confrontandomi con le sensibilit\u00e0 e le aspettative dei miei \u201ccompagni\u201d di gruppo, impegnandoci a sviscerare problemi, elencare ostacoli e ad escogitare idee risolutive.\nAl quesito di cosa possa fare WeMake, ma sopratutto il Progetto, potrei sicuramente e molto facilmente rispondere con una richiesta di rendere quanto pi\u00f9 possibile concreti questi sogni. Tuttavia la migliore replica che potrei dare \u00e8 quella, altrettanto \u201csemplice\u201d, di pormi nella condizione di sintetizzatore e di promotore dei miei bisogni, abbandonando le resistenze dettate da una forma mentis descritta nel mio post e che \u00e8 molto difficile da cambiare anche per me.\nCredo sia questo il valore innovativo di questo percorso piuttosto che il prodotto o il servizio che andremo a progettare \u2013 e magari ad implementare \u2013 del quale comunque verr\u00e0 considerata la capacit\u00e0 di cogliere una richiesta e di dare una risposta concreta.\nSono arrivato a WeMake attraverso lo hipe di Arduino e con una visione limitata alla mia mobilit\u00e0 auspicando la realizzazione di una carrozzella elettronica pi\u00f9 intelligente e predisposta ai miei bisogni reali quotidiani. Oggi comprendo che la vera sfida non concerne esclusivamente gli aspetti tecnologici, per altro non di poca rilevanza, quanto piuttosto il raggiungere uno obiettivo condiviso da pi\u00f9 persone.\nInsomma, parafrasando una antica saggezza, il Progetto pone ciascuno di noi al centro di un viaggio in primo luogo interiore \u201csoppesando\u201d solo successivamente con la sensibilit\u00e0 e la determinazione di quanti presenti sul tracciato la valenza e le opportunit\u00e0 della meta.\n","comment_id":"22822","post_id":"6341","user_id":"8523","parent_comment_id":"22817","creation_date":"Saturday, May 7, 2016 - 11:57","group_id":"0"}},{"node":{"title":"Prossimi passi?","content":"\n... e grazie dei complimenti. OpenCare per ora \u00e8 una bella idea. Per diventare un progetto importante deve crescere tanto. Speriamo di poterlo fare insieme.\u00a0\nPer te in particolare, quale pensi possa essere il prossimo passo? Cosa ti piacerebbe fare con WeMake e OpenCare?\u00a0\n","comment_id":"22817","post_id":"6341","user_id":"34","parent_comment_id":"0","creation_date":"Friday, May 6, 2016 - 12:31","group_id":"0"}},{"node":{"title":"Benvenuto Francesco","content":"\nStoleggendo le vostre riflessioni, grazie per il tempo dedicato a condividerle. Mi ci vuole un po 'pi\u00f9 tempo per scrivere in italiano, ma cercher\u00f2 di condividere le mie esperienze in questo fine settimana!\n","comment_id":"22809","post_id":"6341","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, May 5, 2016 - 12:39","group_id":"0"}},{"node":{"title":"Benvenuto! ","content":"\nah bene bene! vedo con piacere che stai prendendo alla grnade confidenza con la EdgeRyders :)\nil tuo pi\u00f9 che ben accetto protagonismo \u00e8 prezioso (e competente!)\u00a0\nil secondo punto mi piace un bel po' ;)\u00a0\n@Francesco Maria ZAVA\n","comment_id":"22803","post_id":"6341","user_id":"2604","parent_comment_id":"0","creation_date":"Thursday, May 5, 2016 - 11:12","group_id":"0"}},{"node":{"title":"What did you propose as project?","content":"\nGoogle translate is not very coherent, sorry!\nIf you're thinking of a project for people to get involved in while they wait before and after\u00a0Amnesty International efforts, you might want to consider\u00a0waiting times in order to filter participants in and out. @Yara Al Adib was kind enough to share this timeline for refugee\u00a0\"integration\" in Belgium. From what I remember the longest times where after they are identified or have basic papers and before they are found housing- so during the rounds of\u00a0interviews:\u00a0\u00a0https:\/\/edgeryders.eu\/sites\/edgeryders.eu\/files\/Arriving%20to%20BE.pdf\n","comment_id":"22800","post_id":"6339","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, May 4, 2016 - 23:38","group_id":"0"}},{"node":{"title":"Very interesting","content":"\nHi Milan,\nThis sounds like a great start for the project. I'm interested to hear more.\nIf you want to know more about how these types of system work at the Migrant Camps in Calais or Dunkirk let me know.\nIf you manage to take your idea further then i'd be interested to hear more and see if there is anything we can learn from your trial.\nAlex\n","comment_id":"22795","post_id":"6339","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, May 3, 2016 - 20:43","group_id":"0"}},{"node":{"title":"Running like a well oiled machine","content":"\nThank you for the detail, it seems you have figured a lot out over the years. Also, as you can see Alberto and I are very much into communities, so for me the question is always around the \"how\", how people organise, how you get things catering to such a large group. And I know from experience that moving from the online to running offline activities is suprisingly hard - some people to the first great, some people to the second one great, but being able to pull off both seems like a big win.\u00a0\nAnd the balance for you seems to be in doing prevention in a fun\u00a0way:\u00a0\"There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD.\" And in collaboration, which is our bet too for edgeryders.\nWhat do others think?\n","comment_id":"22794","post_id":"6308","user_id":"32","parent_comment_id":"22763","creation_date":"Tuesday, May 3, 2016 - 19:22","group_id":"0"}},{"node":{"title":"Team UDK Open Care","content":"\nPhilipp Hainke (Produktdesign, BA)\nMilan Siegers (Produktdesign, BA)\nJan Stassen (GWK, MA)\nTaina Sondermann (GWK, MA)\n","comment_id":"22788","post_id":"6339","user_id":"8591","parent_comment_id":"0","creation_date":"Tuesday, May 3, 2016 - 15:58","group_id":"0"}},{"node":{"title":"We are all broken and emotionally damaged.","content":"\nHi @ChristineOehme and welcome on board! You might\u00a0want to read @dennis on this same approach - learning about\u00a0not belittling anyone through language or actions (even unintended). His story is called A New Chapter in Other People's Story Books\nYour intuition about needs we all have is also spot on.\u00a0I was reading the other day a telling piece on Medium explaining how\u00a0\"most humans alive right now are broken. Our communities have been stripped of gathering places. We find ourselves isolated and alone, with heads in the digital cloud and eyes fixed to the screen. We are not ready to look one another in the eye. The shame we feel as we strive to do everything right (the way we were taught)\u200a\u2014\u200aas we fail to get jobs, are unable to keep up with growing rental prices, and are displaced increasingly from our homes\u200a\u2014\u200athat shame and humiliation is why we don\u2019t come together.\" (source)\nThe author's thesis is that we can't provide care for others until we regenerate ourselves. I have to say, I find it hard to disagree.\u00a0Any thoughts?\n","comment_id":"22781","post_id":"6336","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, May 3, 2016 - 12:17","group_id":"0"}},{"node":{"title":"Labels","content":"\nHello and welcome, @ChristineOehme!\u00a0\nThis is a recurring theme in Edgeryders. The whole social cohesion industry is based on the notion of \"vulnerable groups\". People belong to such groups if they bear the markers of some kind of disadvantage, for example the dark (or light) skin of an ethnic minority, or a physical or mental disability. Belonging to vulnerable groups can be temporary: for example, there is a group called \"the unemployed\", thought to merit special care, even though no one is born into this group.\u00a0\nLike many people around here, I dislike the notion. There are two problems:\n\nLabelling. People are included in a \"vulnerable group\" by somone sticking a label on them. I am a migrant. You are a female. He is transgender. The labels are not incorrect, but they imply that my having migrated is what is important about me. When providing care, the label will be inspiring the design of the services that target me.\u00a0\n\"Representative agent\". Once they have\u00a0a group to service, care providers set up services with the average component of that group in mind. This activity misses out on the richness of human diversity, and it usually ends up mass-producing services that suck.\u00a0\n\nRight now, we are seeing the damage done by this concept in the so-called migrants issue in Europe. A Syrian doctor (or engineer, or carpenter) is labeled a refugee and stuck in a camp, where another doctor (European) will assess his health. He might be ten times more experienced than his European colleague, but he is not allowed to diagnose himself and others because \u2013 guess what \u2013 in that context he \"is\" a not a doctor, but\u00a0a refugee.\n@Alex Levene told me a funny-heartbreaking story from The Jungle (check out\u00a0his post, it's really interesting). He talked to an Afghan guy in the camp. He fled Afghanistan because he is an atheist, and that's led him\u00a0to trouble. He wants to live in a place where agnosticism is common, bigotry can't touch him\u00a0and nobody cares what you pray to. And there he is, in a refugee camp,\u00a0surrounded by muslims, and everyone goes to great lengths to do everything in a way that will work for muslims. They assume that, since he is Afghan and the average afghan is muslim, he must be muslim: when in fact he is persecuted by muslims.\u00a0\n","comment_id":"22779","post_id":"6336","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, May 3, 2016 - 11:49","group_id":"0"}},{"node":{"title":"The how is simple..","content":"\nFood waste is largely about food that doesn't even end up in your fridge - it gets wasted before that. See example\u00a0of supermarkets throwing away perfectly good food\u00a0as a very common one.\u00a0\n\u00a0\n\u00a0\n","comment_id":"22774","post_id":"6317","user_id":"32","parent_comment_id":"22761","creation_date":"Monday, May 2, 2016 - 12:27","group_id":"0"}},{"node":{"title":"Thanks Alberto and Noemi for your comments","content":"\nIt is amazing to read you, as you raise sharply some key concerns that the group is facing.\n1- How do we help? The facebook group is just one of the means\/tools of the group. As a group, with the resources available for us and the main gaps identified at the national level, we focus on promotional and preventive care. We concentrate in this group, global and local evidence relevant for anyone to prevent cardiovascular diseases. \u00a0 Beyond the key \"theoretical\" principles of WHO, we try to find out, how to raise and to support the motivation of people to change sustainably their dangerous behaviors. There is a need to find the right balance between specificity (focus on the main purpose of the group) and attractivity (diversity of topics and angle of view, pictures, news etc..) in such a way that users have a feeling of distraction while they are exposed to the key messages of prevention of CVD. I perceive that in my context, Facebook is first of all used in for distractive purposes.\u00a0\nThe online facebook group, is not a tool for curative or palliative care such as online consultations with drug prescriptions. Medical doctors are involved in the discussions and if required, they can give offline, specific orientations to go for curative consultations; but discussions in the group, do not involve curative or palliative care.\n2- How do we collaborate? Online, each member has the right to share what matter for him, that is related to the focus of the group. This can be\u00a0a question, a picture, a video, a comment etc... The use of this right of free expression in such a group is not so high everytime of the year. If you scroll down further, you will find periods of high participation \u00a0on some specific subject with high interest and\u00a0later some period of low or no engagement. This depends on several factors, that we are still learning about. I attach to this comment a screenshot that presents a collaborative construction of an answer to a question raised in the group. I can send to you the whole power point if you want.\n3- Dealing with the traps of facebook, how? Facebook is the social media that lot of people use in sub-Saharan\u00a0Africa. The way they use it, seems to be more diversified and intensive than in Europe for instance. Other social media like twitter have a much lower audience in sub-Saharan Africa. So we use Facebook as an important collaborative platform in Coeur d'Or, with the risks that you mentioned including spams. The facilitation team has a critical role to cure the wall of the group. This team has to approve\u00a0all the primary posts, but can not approve comments before their publication. The team has, however, to be vigilant to remove all the inappropriate comments regularly. Private birthday posts are treated as not alway treated as inappropriate. We tolerate them some time for active members as a mean to reward them and to sustain their motivation to collaborate more in the group.\u00a0\n4- Offline events. We realized early in our learning process in the group, that online presence alone is not going to help us reaching our goals. We organize collaboratively offline events: physical activities (walks), risk factors screening, interactive conferences and\u00a0workshops. All those events are organized by members of the group. We use the online tools to recruit members who want to collaborate in the organization. We share with them some key principles and support. We use the online tools as well for advertisement of the events. The access to all the physical\u00a0event is free of charge. We use a collaborative process to raise the funding, using members of the group that has skills and key positions in potential funding structures. By doing so, we were capable of raising up to 25000 dollars in 2015 to organize physical events. This is happening in a context where the ministry of health do not have any internal budget for this kind of event. The local representation of WHO makes about 2000 dollars only available for this kind of event. In the organization of those offline events, community members hold\u00a0a lot of power in the process.\nWe still have a lot to learn, about this experience. Thanks for your attention. I'm very interested in learning from your reactions, analyses, and suggestions.\nThank you for being here with me.\n","comment_id":"22763","post_id":"6308","user_id":"8686","parent_comment_id":"0","creation_date":"Sunday, May 1, 2016 - 19:13","group_id":"0"}},{"node":{"title":"Egypt's poor a living on donations - Gift and share economy. ","content":"\nSomewhere people were calling for money to buy food to be distributed on poor people during the Ramadan. I can't see how do you waste food. Do you cook food, eat and through the remaining away instead of storing it in the fridge for next day?\n","comment_id":"22761","post_id":"6317","user_id":"5902","parent_comment_id":"0","creation_date":"Sunday, May 1, 2016 - 17:01","group_id":"0"}},{"node":{"title":"Experimenting Alternative Economics in Cairo, Egypt","content":"I am researching the alternative economics initiatives to hold an event to experiments the different concepts here in Cairo. I was fascinated by the use of alternative currencies in some communities in Brazil and had the chance to meet someone from Banco de Bem. I basically have many things that I am interested to sell or donate. It has been 3 years since I started to reduce my belonging starting by donating more than half my wardrobe, old functioning computer, extra blanket, etc. Now I want to make some money, can exchange some items for other and donate a few. I started gardening. I planted zuccinis and pumpkins, have herbs and trying to expend :) I am interested in your initiative. I can open another discussion to get ideas for my event. What are the tools known as alternatives to the current economic system? Examples from around the globe? What should I be experimenting and spreading awareness through practice? How? I feel a little bit confused unable to cluster or organise these concepts: - Bartering - alternative currencies - BitCoin - Gift Economy - Swap - LETS etc. Finally what Oasis Game are you talking about? I am in. Dina","comment_id":"22760","post_id":"6317","user_id":"5902","parent_comment_id":"0","creation_date":"Sunday, May 1, 2016 - 16:51","group_id":"0"}},{"node":{"title":"Can you easily go unnnoticed then?","content":"Hi @steelweaver, Just to thank you for the contribution and to say I'm intrigued by what it means that you're operating while waiting for a license, is it dangerous or do you risk anything? Or is it more a matter of time.. and you will get it anyway, be in the books etc? Ever since we heard about the volunteers led clinic in suburban Athens and the potentially many similar ones, it makes you wonder what it is about these grey areas in between formality and informality. Maybe involving people who are not health professionals in the system definition is a requisite for the kind of services you mention - precisely because the ones from the system are too trapped in it to get out alone. ","comment_id":"22756","post_id":"6304","user_id":"32","parent_comment_id":"22648","creation_date":"Saturday, April 30, 2016 - 21:54","group_id":"0"}},{"node":{"title":"Good attitude to start with..","content":"\nLike @Carolina, I am interested, mostly in the traveling tour. @noelito pointed me years ago to a project by European Alternatives called TransEuropa Caravans where a group would go from place to place to meet initiatives and work out storytelling formats for connecting them. See this video as example:\n\n\nThis wasn't moneyless though, and probably costs a lot of time and work. and only as a starting and learning point. \nWe tried network building last year in Bucharest with a project called Futurespotters -wasn't food related but it was also about getting people who are very much aligned in values and agree on a lot of things that need to be solved, to meet each other and collaborate. But then a lot of other things are needed to make a network be self-supporting as you say (not sure if it can though), I don't even know where to start - leadership, vision, headspace to get out of your own bubble and hyper localized projects -there are so many great initiatives out there doing good. Someone once said to me that they're actually meant to be small, informal, cheap, and operating at any other scale would ruin it.\nThis said, food sharing and looking at reducing waste sounds like it's part of the future, I dont see anyone here disagreeing, so you're on to something..! \n","comment_id":"22755","post_id":"6317","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, April 30, 2016 - 21:05","group_id":"0"}},{"node":{"title":"Well done ","content":"I just wanted to quickly express my thanks to @Sam_Muirhead for making this video. I really really like it, the people in it and also the animation, you've gotten better and better at this! ","comment_id":"22742","post_id":"6295","user_id":"32","parent_comment_id":"0","creation_date":"Friday, April 29, 2016 - 16:54","group_id":"5954"}},{"node":{"title":"Well done ","content":"I just wanted to quickly express my thanks to @Sam_Muirhead for making this video. I really really like it, the people in it and also the animation, you've gotten better and better at this! ","comment_id":"22742","post_id":"6295","user_id":"32","parent_comment_id":"0","creation_date":"Friday, April 29, 2016 - 16:54","group_id":"5954"}},{"node":{"title":"Well done ","content":"I just wanted to quickly express my thanks to @Sam_Muirhead for making this video. I really really like it, the people in it and also the animation, you've gotten better and better at this! ","comment_id":"22742","post_id":"6295","user_id":"32","parent_comment_id":"0","creation_date":"Friday, April 29, 2016 - 16:54","group_id":"5954"}},{"node":{"title":"Well done ","content":"I just wanted to quickly express my thanks to @Sam_Muirhead for making this video. I really really like it, the people in it and also the animation, you've gotten better and better at this! ","comment_id":"22742","post_id":"6295","user_id":"32","parent_comment_id":"0","creation_date":"Friday, April 29, 2016 - 16:54","group_id":"5954"}},{"node":{"title":"Hello Alberto, nice to meet","content":"Hello Alberto, nice to meet you too! \u201eBut I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself in some other way.\u201c Exactly! Thanks for your ideas and input. I think that your idea of changing my own perception on success and failure is really a good starting point. But it is a piece of a much more complex puzzle, I guess. Building communities of like-minded people sounds good, too, and I see how the unMonastery project contributes to that. Maybe one could also find a way to promote an alternative vision for society within \u201emainstream culture\u201c, whatever this is... ","comment_id":"22740","post_id":"6261","user_id":"8627","parent_comment_id":"22452","creation_date":"Friday, April 29, 2016 - 12:37","group_id":"0"}},{"node":{"title":"Good morning,\u00a0","content":"\nGood morning,\u00a0\n@Paul Free, I'm totally in! :)\nI really liked the way you approach this issue, starting with traditional economics basis and then ending in something more like socia\/ecological\/inclusive economics and global welfare.\u00a0\n","comment_id":"22713","post_id":"6317","user_id":"8439","parent_comment_id":"0","creation_date":"Thursday, April 28, 2016 - 07:54","group_id":"0"}},{"node":{"title":"Foodsharing ","content":"\nThe Foodsharing idea (https:\/\/project.yunity.org\/about_foodsharing in English) just makes so much sense.\u00a0\nI am not completely sure we can classify it as \"care\", though. But perhaps it's not even \u00a0that important.\u00a0\n@Paul Free, I know there are plans of community (vegetable)\u00a0gardening as part of the city of Galway's bid to become European Capital of Culture 2020. This is led by the Transition Town people in town. @Noemi and @NiallOH know more about this. Should we put you in touch?\u00a0\n","comment_id":"22710","post_id":"6317","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 27, 2016 - 18:51","group_id":"0"}},{"node":{"title":"Italy, too","content":"\nAgree with @melancon. And don't get me started about food culture in Italy, which is strictly regional rather than national.\u00a0\nNorthern Europeans seem to make less of a big deal of it, though.\u00a0\n","comment_id":"22709","post_id":"6300","user_id":"34","parent_comment_id":"22700","creation_date":"Wednesday, April 27, 2016 - 18:30","group_id":"0"}},{"node":{"title":"Food not a big thing in Europe ... ?","content":"\nAs a former North American (left 25 years ago), I keep being flaggerblasted by how much food links people in France. Everywhere in France. I guess this is a country where everyone has a very personal perspective on how \"blanquette de veau\" should be made and is ready to debate about it even with the president of France.\nFood market is where you go not only for food, but to meet people. In my village, the Saturday morning market deploys its fantasies before a magnificent mixed style Roman-Gothic Cathedral with teraces filled with people chatting and laughing. The Saturday market is is a favorite meeting point. Going to the market is the supreme alibi to act as a \"cigale\" (it's only now I realize there is no english translation for this word ...), enjoy the sun and spend time with friends. This is where you go to distribute flyers and mobilize people for your evening concert, or politicians distribute tracts and shake hands to get reelected, ...\nThe evening my wife delivered my daughter, we were discussing wine tastings with the obstetrician. The thing French people bring back from the place they visited on vacation: food, to share it with others.\nAnd do you know what French people\u00a0talk about when they share a good meal: food, remembering the meal and wines they tasted together the last time ... I am ready to believe Germans prefer chatting about the weather. The French also talk about the weather, debating on how it will affect the harvest and quality of the next \"mill\u00e9sime\" ... :-)\n","comment_id":"22700","post_id":"6300","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, April 27, 2016 - 16:03","group_id":"0"}},{"node":{"title":"How public?","content":"\nSo, here's what I'm hearing. We organize a call for the \"Edgeryders DroneTech Instant Group\". You introduce. We discuss use cases. The output is some form of documentation. The EDTIG gains a small stake in your entry, to be formalized and quantified in and when.\u00a0\nWhen could that be? Early next week OK? (BTW, at LOTE we got friendly with two young Romanian aerospace\u00a0engineers who are doing a stage of sorts at Euro Control... might be useful, and they are nice people).\u00a0\nAlso: do we go off platform? How public are you comfortable with being?\n","comment_id":"22675","post_id":"4701","user_id":"34","parent_comment_id":"22659","creation_date":"Wednesday, April 27, 2016 - 09:58","group_id":"5954"}},{"node":{"title":"How public?","content":"\nSo, here's what I'm hearing. We organize a call for the \"Edgeryders DroneTech Instant Group\". You introduce. We discuss use cases. The output is some form of documentation. The EDTIG gains a small stake in your entry, to be formalized and quantified in and when.\u00a0\nWhen could that be? Early next week OK? (BTW, at LOTE we got friendly with two young Romanian aerospace\u00a0engineers who are doing a stage of sorts at Euro Control... might be useful, and they are nice people).\u00a0\nAlso: do we go off platform? How public are you comfortable with being?\n","comment_id":"22675","post_id":"4701","user_id":"34","parent_comment_id":"22659","creation_date":"Wednesday, April 27, 2016 - 09:58","group_id":"5954"}},{"node":{"title":"Then there are those who take it a bit too far :))","content":"\nJust as I had finished reading you post \u00a0@Cindy_P. this piece of news floated past my feeds:\n\n","comment_id":"22673","post_id":"6300","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, April 27, 2016 - 09:40","group_id":"0"}},{"node":{"title":"Market position","content":"\nThey also have a different market position, in-house capability, and thus motivations. On top of that the amazon drone skit is highly effective advertising (6M views) for people who don't chuckle at the drone performance pictured there (which is also just a placeholder of course).\n","comment_id":"22660","post_id":"4701","user_id":"6534","parent_comment_id":"22653","creation_date":"Tuesday, April 26, 2016 - 18:42","group_id":"5954"}},{"node":{"title":"Market position","content":"\nThey also have a different market position, in-house capability, and thus motivations. On top of that the amazon drone skit is highly effective advertising (6M views) for people who don't chuckle at the drone performance pictured there (which is also just a placeholder of course).\n","comment_id":"22660","post_id":"4701","user_id":"6534","parent_comment_id":"22653","creation_date":"Tuesday, April 26, 2016 - 18:42","group_id":"5954"}},{"node":{"title":"Close","content":"\nUp to the last bullit you are pretty much correct.\nNot exactly a white canvas session but it is early stage none the less. I already have a very specific use case in mind. But it is a tickly one. I would like to push it with @ElaMi5 and perhaps one or two people from EdgeRyders who can attest that this is not completely bonkers and makes some sense (from their experience, and also so we don't completely rely on the UN to push this). It is out of competition for the ongoing challenge though. That challenge just sparked the idea. The idea does not threaten any business field of Airbus and they could use it as a test case to see if they actually can get more agile.\nOther story:\nIf Edgeryders were to help me with my current entry in the challenge (e.g. through illustration, or something I can't think of right now) - and I make a lot of monies. Then I would be very happy to fork some back. They have 3 categories including community prize, I don't think \"storming the election process\" would be fair - even though it would be easy money with 10k$ for the first prize. The other prizes are considerably more substantial.\n@johncoate : I'll answer here if that is okay. Airbus is a organizational dinosaur that has existed with no real predators going after it for decades. It is afraid that natural selection will soon ring its doorbell. They can see the future markets shifting to their disadvantage and realize they probably have to re-invent themselves. This drone challenge is only a placeholder (even though it is one of the actual threats to many of their products). It could also be the move to electric aviation for example. It is probably just as much a test case for implementing different info flow\/process architectures\n","comment_id":"22659","post_id":"4701","user_id":"6534","parent_comment_id":"22649","creation_date":"Tuesday, April 26, 2016 - 18:35","group_id":"5954"}},{"node":{"title":"Close","content":"\nUp to the last bullit you are pretty much correct.\nNot exactly a white canvas session but it is early stage none the less. I already have a very specific use case in mind. But it is a tickly one. I would like to push it with @ElaMi5 and perhaps one or two people from EdgeRyders who can attest that this is not completely bonkers and makes some sense (from their experience, and also so we don't completely rely on the UN to push this). It is out of competition for the ongoing challenge though. That challenge just sparked the idea. The idea does not threaten any business field of Airbus and they could use it as a test case to see if they actually can get more agile.\nOther story:\nIf Edgeryders were to help me with my current entry in the challenge (e.g. through illustration, or something I can't think of right now) - and I make a lot of monies. Then I would be very happy to fork some back. They have 3 categories including community prize, I don't think \"storming the election process\" would be fair - even though it would be easy money with 10k$ for the first prize. The other prizes are considerably more substantial.\n@johncoate : I'll answer here if that is okay. Airbus is a organizational dinosaur that has existed with no real predators going after it for decades. It is afraid that natural selection will soon ring its doorbell. They can see the future markets shifting to their disadvantage and realize they probably have to re-invent themselves. This drone challenge is only a placeholder (even though it is one of the actual threats to many of their products). It could also be the move to electric aviation for example. It is probably just as much a test case for implementing different info flow\/process architectures\n","comment_id":"22659","post_id":"4701","user_id":"6534","parent_comment_id":"22649","creation_date":"Tuesday, April 26, 2016 - 18:35","group_id":"5954"}},{"node":{"title":"And how would it be different that Amazon's Drone Air?","content":"\nOther than it being non-commercial.\nhttp:\/\/www.amazon.com\/b?node=8037720011\n\u00a0\n","comment_id":"22653","post_id":"4701","user_id":"8169","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 16:58","group_id":"5954"}},{"node":{"title":"And how would it be different that Amazon's Drone Air?","content":"\nOther than it being non-commercial.\nhttp:\/\/www.amazon.com\/b?node=8037720011\n\u00a0\n","comment_id":"22653","post_id":"4701","user_id":"8169","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 16:58","group_id":"5954"}},{"node":{"title":"Let me get this right","content":"\n@trythis, you'll have to walk me through this. Let's see if I got it right:\n\nYou already submitted an entry, and are now looking for use cases\n\"Use cases\" is shorthand from \"plausible revenue models\". Use a drone for something, get paid as a function of the value of that something.\nYou are thinking about use cases in disaster relief and development in general, as per this thread.\nSo, you would like a brainstorming session with (a) a few Edgeryders; (b) someone from Local Motors, that you have already identified; (c) someone smart from the dev sector.\u00a0\n\nIs this right?\nSuppose we do come out with 2-3 plausible use cases.\u00a0What happens\u00a0next?\nWhat does success look like? For you, for Edgeryders, for the people we involve?\nSorry, all of this is probably obvious to you, but remember we have never remotely done this before.\u00a0\n","comment_id":"22649","post_id":"4701","user_id":"34","parent_comment_id":"22644","creation_date":"Tuesday, April 26, 2016 - 14:44","group_id":"5954"}},{"node":{"title":"Let me get this right","content":"\n@trythis, you'll have to walk me through this. Let's see if I got it right:\n\nYou already submitted an entry, and are now looking for use cases\n\"Use cases\" is shorthand from \"plausible revenue models\". Use a drone for something, get paid as a function of the value of that something.\nYou are thinking about use cases in disaster relief and development in general, as per this thread.\nSo, you would like a brainstorming session with (a) a few Edgeryders; (b) someone from Local Motors, that you have already identified; (c) someone smart from the dev sector.\u00a0\n\nIs this right?\nSuppose we do come out with 2-3 plausible use cases.\u00a0What happens\u00a0next?\nWhat does success look like? For you, for Edgeryders, for the people we involve?\nSorry, all of this is probably obvious to you, but remember we have never remotely done this before.\u00a0\n","comment_id":"22649","post_id":"4701","user_id":"34","parent_comment_id":"22644","creation_date":"Tuesday, April 26, 2016 - 14:44","group_id":"5954"}},{"node":{"title":"yep","content":"\nThanks, @Alberto. Couldn't agree more about the conveyer-belt paradigm of mainstream medicine. Acupuncturists who have tried to work in the NHS have been similarly frustrated to the doctors - more, in fact, as their treatment is so individualised.\nBut as the era of individualised medicine gathers steam, this is something that all forms of healthcare are going to have to grapple with.\n2 months is an extremely long time (2 weeks would be more usual). I won't bore you with the details, but essentially, acupuncturists are licensed at the local level in the UK alongside tattooists and body piercers (which have far greater risks of injury, blood-borne contamination, etc, and are, clearly, not any kind of healthcare) - and are thus entirely at the mercy of whatever inappropriate regulations the district council chooses to impose.\nAs I said, the knock-on effects are common to any such grassroots community project - but I do think that there is a particular momentum that comes from the project delivering a treatment that directly makes people feel emotionally and physically better;\nand, of course, the community clinic model is unique to acupuncture because you can't treat multiple patients at once with most other modalities!\n","comment_id":"22648","post_id":"6304","user_id":"1915","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 14:13","group_id":"0"}},{"node":{"title":"Next move, warm up the engines","content":"\n@Matthias and @Natalia Skoczylas\nI've submitted an entry to a design challenge over at local motors (also warrants a visit for they technical platform implementation):\nhttps:\/\/www.youtube.com\/watch?v=4iznBFghD4o\nIt is a design for a civil drone. I've been going through likely use cases now and in the future for a while, and there is one in particular that I would like to discuss with you guys and ideally Millie. I've already contacted her and gave her a heads up. This is relatively tight deadline (26 days left). If you would be open for a group call, I'd like to proceed as follows:\nPick a tiny team of EdgeRyders with complementary skills and creds, find the right person at LM - probably Florian Feise, and the right person or two within UN\/NGO scene (Milie +?), sit down together and build a very rough scenario \/ 80-20 business case that has just enough detail to get a Letter of Endorsement from the next higher level, and with that knock on Airbus' door.\nIf you (anyone) is interested in what this is about, and would like to help please get in touch with me. I don't feel comfortable plastering this all over the web at this stage, but it is not a state secret. Also it has nothing to do with military applications.\nLastly, while I was browsing around local motors I thought that there could be a good bit of symbiosis & learning from each other going on between the two communities. So if someone of you talks with Alberto anyway, perhaps you could mention this to him. Local Motors could really use someone who knows networks and communication patterns. On the other hand they've been around for a good while and could probably give Alberto some pointers on mentoring possibilities.\n","comment_id":"22644","post_id":"4701","user_id":"6534","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 11:54","group_id":"5954"}},{"node":{"title":"Next move, warm up the engines","content":"\n@Matthias and @Natalia Skoczylas\nI've submitted an entry to a design challenge over at local motors (also warrants a visit for they technical platform implementation):\nhttps:\/\/www.youtube.com\/watch?v=4iznBFghD4o\nIt is a design for a civil drone. I've been going through likely use cases now and in the future for a while, and there is one in particular that I would like to discuss with you guys and ideally Millie. I've already contacted her and gave her a heads up. This is relatively tight deadline (26 days left). If you would be open for a group call, I'd like to proceed as follows:\nPick a tiny team of EdgeRyders with complementary skills and creds, find the right person at LM - probably Florian Feise, and the right person or two within UN\/NGO scene (Milie +?), sit down together and build a very rough scenario \/ 80-20 business case that has just enough detail to get a Letter of Endorsement from the next higher level, and with that knock on Airbus' door.\nIf you (anyone) is interested in what this is about, and would like to help please get in touch with me. I don't feel comfortable plastering this all over the web at this stage, but it is not a state secret. Also it has nothing to do with military applications.\nLastly, while I was browsing around local motors I thought that there could be a good bit of symbiosis & learning from each other going on between the two communities. So if someone of you talks with Alberto anyway, perhaps you could mention this to him. Local Motors could really use someone who knows networks and communication patterns. On the other hand they've been around for a good while and could probably give Alberto some pointers on mentoring possibilities.\n","comment_id":"22644","post_id":"4701","user_id":"6534","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 11:54","group_id":"5954"}},{"node":{"title":"Don't try this alone","content":"\nInspiring, @KiraVde and @ivan (welcome back to both of you!). But I don't think it's quite that simple. \"Being different\", going by a different value system, is itself entropic. Here's why: to accomplish anything, we humans need other humans. Other humans are attracted by \"successful\" (as per the dominant canon of what \"successful\" means). Moreover, we suffer from a documented psyhological bias called the halo effect, that makes us assume that success trasfers across domains. If you are a successful marathon runner, I will rate higher your\u00a0chances of starting a viable company, even though the skills involved with running marathons are not the same ones needed to run a business. People will help more gladly others when they think they are winners. By doing so, they will increase the chances of success of these perceived winners.\u00a0So, being perceived as successful increases your chances of actually being successful.\u00a0\nThat's not to say you cannot define your own measure of success. But it does mean this is a lot easier when done in tribes. If you inhabit a cluster of the global social graph that goes by different rules, you are kind of OK being different, because your social network is also different, and that means you can mobilize those people to help in whatever it is you are doing. You can enjoy a reasonable measure of social esteem, even if it is localized in your corner of the graph.\u00a0\nAn unfortunate consequence of this is that, the more different you want to be, the more energy\u00a0you need to invest promoting yourself. The message is \"look at me, I am not a failure, I am a success by my own measure\". Social media are full of this, often cloaked in hyper-individualistic narratives, of the \"I quit my day job to follow my dream\" type. Which is ironic, because\u00a0hyper-individualists (if they exist) do not care about what people on Facebook think of them. Self-promotion is, in my opinion, the expression of a deep need\u00a0for social acceptance.\u00a0\n","comment_id":"22638","post_id":"6261","user_id":"34","parent_comment_id":"22632","creation_date":"Tuesday, April 26, 2016 - 10:07","group_id":"0"}},{"node":{"title":"Tell us about the walk","content":"\nHi Jean-Paul, a warm warm welcome to Edgeryders, we didn't have a chance to meet in Brussels last Feb I think.\nImpressive indeed, how many community organisers are needed to cater for\u00a0a group of >21000?\nWhat I like most about your initiative is that you organise offline gatherings like the walk, and I'm curious how they work,\u00a0if you learn new stories. For example, some people here in the community mentioned how for them\u00a0health- or social\u00a0care is about reciprocity:\u00a0People help other people in need and receive help when the time comes when they need it. Do you know how the people in your group relate to care? Is it a service or more a commmunity that they are part of?\nThanks again!\n","comment_id":"22636","post_id":"6308","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 07:18","group_id":"0"}},{"node":{"title":"As I remember you..","content":"\n.. Hi @Jasen Lakic thank you for your candidness. and welcome back, it's been a while since Brussels!\u00a0I think there is somewhere a click one must do even to say: \"i'll stop and think and find myself\" as you said you did.. and that moment is so relative that a lot of the time you don't recognize it\u00a0and think that maybe you should push yourself a little more because the problem is in something you're doing wrong. \u00a0Unless you have gurus around you who can push you into that realisation. Did any of you try seeing a therapist at any point?\u00a0Or @ivan, did anyone advise or help you get to a strategy of taking better care of yourself?\u00a0\u00a0(btw nice to see you back as well!)\n","comment_id":"22635","post_id":"6261","user_id":"32","parent_comment_id":"22633","creation_date":"Tuesday, April 26, 2016 - 06:31","group_id":"0"}},{"node":{"title":"expectations and value systems","content":"\nHello friends,\nVery interesting topic and quite a common problem as well i believe. I will share with you few things in hope it is beneficial :).\nHaven't felt depression in years, sadness very rarely and short termed. I believe sadness comes from our inability to accept a certain situation, our resistence to it. If there is a situation we don't like we have only two choices: Accept it as it is or change it or at least try to change it. In both situations we shouldn't be depressed. If de did all in our power and failed to change it, we should be satisfied with ourselves and accept the outcome, since there is no alternative. However i do believe once sadness comes we should not try to supress it, let it run its course because anything else would be commiting violence upon our own nature and sadness would still manifest itself somehow.\nGood at school, always calm and good kid, inventive, reading since i was 5, playing chess since my 6th year...i can't really tell how many times i heard my family members say this dreadful phrase to their children: \"just take Jasen's example, can't you be like him\".\u00a0\nThan i was 27, married, hated my job, didn't love my wife, i was miserable and had a lot of health issues. I started wondering: \"how did i end up right here at this moment in life?\" I knew i totally went off my path but didn't yet realise how or where is my path.\u00a0\nAfter realising\u00a0the community in which i grew up actually applied huge subconscious pressure on me through their projections of myself, through their expectations especially, and that so many of my life's actions were led by those thoughts in my head which were not really my thoughts. (i actually got married because everyone was telling me it's the right time and after some time it made sense...how crazy!).\nMy next step was\u00a0selfexploration, i had to get to know myself. I stayed at home reading books for months, Carlos Castaneda's books were an amazing discovery at that time. I went into nature for periods of isolation where i spent my time in silence and thought, and finally after some time i started meditating.\u00a0\nAs far as success is concerned i agree with Alberto. Should we measure ourselves in comparison to others or by finding our own system of values and definition of success? For example i have 0 debt, built my own house by the age of 28, a good\u00a0car and pretty much anything i need materially now...most of my friends think i am succesful. I would however consider myself succesful if i could succeed in creating a well balanced family full of love and respect, or if i could be nothing but a positive and inspiring experience for anyone who meets me. Or if i could attain permanent state of meditation for example. Also i have been with many women, and ofcourse friends\u00a0i went out with always considered me lucky or succesful with women. Well again my definition of success is very different: i would have preferred to stay with the first one i loved...or with any i loved. Now, in retrospective i rather think i failed miserably with some of those women and brought really bad kharma on me through those \"successes\" :).\n","comment_id":"22633","post_id":"6261","user_id":"8545","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 03:42","group_id":"0"}},{"node":{"title":"Afraid of relaxing?","content":"\nI feel your plea, and as @KiraVde says I also wish I would not give too many fucks.\nMyself, I am afraid of taking things easy and slowing down, because I feel that if I am not going forward I am going backwards (by whatever standard!) and.. what if I stopped caring? That scares me the most I guess.\nAt the same time I see a spiritual path\u00a0in finding new ways of changing yourself to overcome challenges. I see these situations like signals telling me to adapt and find a new way to fit better.\u00a0\nSaying that, the best strategy I have found up to now is to try to be rested, eat well, exercise, pursue some hobby and be happy. In exactly that order. As you build up energy the number of fucks given dramatically decreases and you are psychologically more resiliant. Sometimes very resiliant.\u00a0\nThe really hard thing for me is to realize when I am eating too much into my energy and I can become tired, grumpy, worried,\u00a0overworked.. and then fearful without even realizing I am getting there. So, when you are there.. just press reset and rebuild your energy, then much of the fears of failing and checklists will just evaporate.\n","comment_id":"22632","post_id":"6261","user_id":"1695","parent_comment_id":"0","creation_date":"Tuesday, April 26, 2016 - 01:13","group_id":"0"}},{"node":{"title":"\"Community\"","content":"\nHello @steelweaver, welcome back! It's been a while.\u00a0\nI am not sure about acupuncture as such. On the other hand, I am very intrigued by\u00a0what your model adds to acupuncture. You add:\n\nHumane treatment. On this I have to disagree with Steven Novella. He says:\u00a0\"All good doctors\u00a0are empathetic and patient-centered.\" And this is true, but it misses the point. Because most doctors work in systems which are not humane at all \u2013 and can't be, because they run on an industrial age paradigm. They derive efficiency from scale and standardization, and that requires patients are treated as production batches in manufacturing. Many doctors absolutely hate this, but it's the only game in town. Acupuncture is out of this system, and therefore it can afford to at least try to be humane.\n\u00a0Collective treatment and destigmatization. No brainer.\nAffordability \u2013 always a good thing.\n\nIt seems to me these are tenets of anything we can rightfully\u00a0call open care.\u00a0\nAnother interesting data point you have found is about licensing and regulation. Is two months a long time to get a license in the UK? If so, what do you think is going on, and how could it be fixed?\n(I don't buy knock-on effects really, because you'd have them also if you administered any other treatment than acupuncture (as well as not delivered in the patient's home).\u00a0\n","comment_id":"22631","post_id":"6304","user_id":"34","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 23:50","group_id":"0"}},{"node":{"title":"Impressive!","content":"\nWelcome, @jdossou80@yahoo.com. And\u00a0congratulations! Coeur d'Or seems like an impressive achievement.\u00a0\nI wandered a bit within the group (also applied to join). It has all the glory and the traps of Facebook itself: super-easy to join (and that helps your numbers), very mobile-friendly, but also difficult to sort out, with important content mixed with personal stuff like birthday parties and \u00a0even spam (as I write this, someone calling themselves \"Marcel Enyonam\" is offering cheap loans on about ten posts).\nMy main question is: do you get people exchanging about their experiences as patients (or perhaps care givers, like parents or adult children of patients)? How do they collaborate, and on what?\u00a0I scrolled down a while, but I did not find much. But then, I am not a power user of Facebook, maybe it's just me :-)\u00a0\n","comment_id":"22630","post_id":"6308","user_id":"34","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 23:27","group_id":"0"}},{"node":{"title":"Discovery channel rebels","content":"\nHi guys!\nOne time I sat in grand \u00e9cart position for 48 hours so that I could join the pro gym team. Just to illustrate: I'm very disciplined and am applying to be Tina's new best friend. But the latest skill that I've been training is to do nothing. The saying goes that\u00a0a little hard work never killed anyone, but after a burn-out and a crushed nerve at my young age,\u00a0I'm not prepared to take the risk.\nWhen the going gets tough and I feel guilty about my time spend doing non-productive things, I remind myself of two things.\nOne: when you look at discovery channel, animals don't spend all their time chasing. Most of it is just lying in the sun. No judgement necessary.\nTwo: doing nothing is very rebelious these days. Why think of myself as a lazy-ass when I can think of myself as bad-ass?\nOn the question of how to\u00a0help people to cope with expectations they can't and don't want to meet - \u00a0I think it's something we each do for ourselves. Personally I draw a lot of inspiration from people who don't give too many fucks. So I try to be that person, too.\n","comment_id":"22624","post_id":"6261","user_id":"7645","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 17:41","group_id":"0"}},{"node":{"title":"Chinese Culinary Medicine","content":"\nJust to add to @Alberto's last point: one of the most useful things about the paradigm of Traditional Chinese Medicine is that it can also be applied to food-as-medicine - without requiring a spare decade to study nutritional science!\nA patient given a diagnosis (e.g. 'Excess metal constricting the breathing', or 'jing deficiency') can be treated with acupuncture and herbs, but can also adapt their diet to help reinforce those effects (e.g. eating more spicy food to open the lungs, or eating more dense, proteinous foods).\nI understand this is fairly common practice in China, where the terms of the medical paradigm are well-established in everyday life and language.\nRelevant to: the story I just posted on community acupuncture.\n","comment_id":"22621","post_id":"6300","user_id":"1915","parent_comment_id":"22606","creation_date":"Monday, April 25, 2016 - 17:20","group_id":"0"}},{"node":{"title":"OpenCare as a Wikipedia-type system","content":"\nVery interesting, @Ezio Manzini! Here's the money quote:\u00a0\nIn principle, everybody can care for someone else [...]\u00a0in different forms [...], but all of them require attention. Given that attention is a limited resource [...] care [...]\u00a0is [also]\u00a0a diffuse but limited resource.\u00a0\nThis vision of care activities reminds me of Wikipedia. Wikipedia is quite a coherent object. It's also very decentralized\u00a0in scope and\u00a0authorship; and tasks are allocated across contributors by self-selection, without central control.\nContributors are extremely diverse in their interests, experience, and in the time they contribute to Wikipedia. Some Wikipedians, like me, might fix a typos or repair a broken link here or there, and only very occasionally enter a factual information. Others take full stewardship for entries\u00a0that are important to them. Others, still, make tens of edits a day. A lot of Wikipedia's advantage comes from the fact that it can use effectively\u00a0small\u00a0contributions.\u00a0\nOpen care might be the same. A mature open care ecosystem, I propose, is one where the natural human impulse to care and help can be easily translated into a contribution. One, in other words, where, if you can only contribute 30 minutes, you can, and your contribution will make a small, but tangible difference. Works?\n\u00a0\n","comment_id":"22614","post_id":"6258","user_id":"34","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 15:05","group_id":"0"}},{"node":{"title":"Caring for loved ones (Alzheimer, dementia..)","content":"\nThanks for sharing this @HoneyMk, I was very impressed by Philipp's grandparents\u00a0story (is he @makerphil?), which tells things so many of us experienced, albeit not to the same degree.. my family\u00a0had to take care for 5 years of my grandmother, who also suffered from dementia.\nShe was lucky because she had a large family and they all shouldered this, but for the two people who lived side by side with her it was immensely difficult. I don't know if it has to do with the medical infrastructure in a place, but where I come from it's always the family who takes care of ill members, never long term professional services, mostly out of duty and love.\nYou say you don;t know how it has affected your life, \u00a0but maybe you know how it has affected your mom's life? To give you an idea, my family was so unprepared to cope with this that the new roles they were finding themselves in completely messed up the family. It had\u00a0to do with matriarchal\/ patriarchal figures not being so present anymore and then younger ones having to cope with a ton of things and make decisions that they felt unprepared for.\u00a0\nA takeaway point from your story: love and laughter, the authentic ones, make for an important variable in any care relationship, just to keep that in mind.\n","comment_id":"22610","post_id":"6195","user_id":"32","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 13:39","group_id":"0"}},{"node":{"title":"Anything we can help with?","content":"\n@Cindy P. are you looking to gather more projects about food? Should other people here in the community\u00a0help by pointing you to interesting initiatives?\nIdeally whenever you post a story make sure include a note asking for help, that helps others jump in with something you actually need :-)\n","comment_id":"22608","post_id":"6300","user_id":"32","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 11:26","group_id":"0"}},{"node":{"title":"In practice, though...","content":"\nWell, hard to disagree with what you write here. I am curious about the\u00a0practice\u00a0of care, though. What does it look like for you? How do you personally give and receive care? Is it babysitting for a friend? Is it spending time with a sick relative? How does that experience influence your views?\n","comment_id":"22607","post_id":"6299","user_id":"34","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 11:18","group_id":"0"}},{"node":{"title":"And in fact","content":"\nHello and welcome @Cindy P. Thanks for these reflections. They make a ton of sense not only to me, but, it seems, to a lot of people.\n\nIt brings people together.\u00a0During LOTE5 (we had a workshop called Collaborative Inclusion, you would have liked it It think) we learned about a project in Belgium called DineWithUs. Elizabeth, the lady who started it, said:\u00a0\n\n\"Once a migrant has been processed and is \"legalised\" in Belgium there remains a wall between Belgians and newcomers. I was personally frustrated that I did not know any of them, and all my friends were white. Our idea is pretty simple, just share a meal, learn recipes and teach your own. We have now over 100 registrations, it's working OK but we need to grow.\"\n\nIt has direct consequences on health \u2013 it\u00a0is,\u00a0in fact, health care. I recently learned that a medical school in the US started giving cooking classes to its students. The key person is a man called Tim Harlan, \"who is both a doctor and a chef\", and heads something called The Goldring Center for Culinary Medicine. Theirs is an open care initiative, I think, because they teach mediacal students, doctors and the local community to cook in a tasty and healthy way. This way, they are making patients into caregivers (because patients cook too!) and even inventing a new shared\u00a0language whith which doctors and patients can talk about health.\u00a0\"We are not talking about nutrition: we are talking about food.\"\u00a0\n\n\n\n\n\n\u00a0\n","comment_id":"22606","post_id":"6300","user_id":"34","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 10:49","group_id":"0"}},{"node":{"title":"What's your design process?","content":"\n@Milan Siegers thanks for keeping us updated. Curious, how do you go about finding answers? Do you go into academic literature or more practical surveying, or..? \u00a0\u00a0\nA friend of mine, expat living in Cluj, has\u00a0similar questions to yours and he's starting to design a project with psychology students: to bring people in town of different ethnicity, ages and occupations together in meaningful socializing, because everyone is so into their own clique. The proposition is to just give themselves an opportunity to meet new people, no strings attached for a couple hours? Basically they will run\u00a0events branded as such -\u00a0\"you should spend time with strangers, it's healthy and fun\".\nIt's nice because it starts with a personal burning point and doesn't pretent it will find answers. Needing to find\u00a0answers can be scary sometimes :-)\n","comment_id":"22605","post_id":"6297","user_id":"32","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 09:25","group_id":"0"}},{"node":{"title":"Working in groups?","content":"\nHi @Cindy P., are you working with @Luisa by any chance? I see she has posted an almost identical challenge.\u00a0\nAlso, @makerphil was asking something similar and I offered an example of a (public) happening and eyecontact experiment.\nHow can we, others in the community, help?\u00a0\n","comment_id":"22604","post_id":"6301","user_id":"32","parent_comment_id":"0","creation_date":"Monday, April 25, 2016 - 09:13","group_id":"0"}},{"node":{"title":"How can learn people in this","content":"\nHow can learn people in this society to be tolerant and patient with others. These are characteristics that I see missing for example in the context of design.\n","comment_id":"22603","post_id":"6244","user_id":"8598","parent_comment_id":"22602","creation_date":"Sunday, April 24, 2016 - 23:23","group_id":"0"}},{"node":{"title":"what can people together?","content":"\nHi Alberto\n I think people who stay react badly to people on the move basically because they did not have the same experience to go far away from home and rebuild a home in other place, the most of this people were always in the same place, maybe because this place was very comfortable for them. they are people who maybe do not want to leave the comfort zone and take risk. So they can\u00b4t understand people on the move because they maybe didn\u00b4t try go on the move. The other reason maybe that people who stay living very well in this comfort zone and are afraid that people are coming can interfere in this zone. They are afraid to the unknown. The question maybe be is how can lose the fear to the unknown in this society? and What can bring people together ?\n","comment_id":"22602","post_id":"6244","user_id":"8598","parent_comment_id":"22455","creation_date":"Sunday, April 24, 2016 - 23:15","group_id":"0"}},{"node":{"title":"wow that's a tough one","content":"\nReally hard one: We have a flag over our head, marking our belonging to a certain group of people with common \"values\", the first one being same nation based on tradition\/culture, language and everything else (while in fact the flag only marks the territory owned by a certain power structure). Then the bigger group of religion and even bigger group of race. We have been conditioned to think in certain patterns (mostly as means of control and achieving power by few) and great majority of people don't have time\/will to question all those things. Not even counting that, just take into consideration collective history, how many bad past experiences have their been? We Europeans have destroyed and dominated every other culture we encountered in our \"benign\u00a0attempts to civilise them\"(if we had means to do so). All those things are big obstacles, it will take a loooooong time i believe before we undo several thousands of years working against us.\nThe only way to truly build bridges between communities is to \u00a0have them work together, eat together, talk and exchange knowledge about each other. (even then you\u00a0might get an incredible reaction like \"hey Mohamed is such a nice guy...FOR a Morrocan\", so one stops regarding him as a foreigner but \u00a0he stays an exception, he is UNLIKE those others\u00a0:).\nAll those divisions are totally unnatural if you ask me, in fact it is beneficial for human species to mix as much as possible, greater mixture of genes leads naturally to better results and greater mixture of cultures\/difference of experiences is of immense value.\nI dont really have a flag above my head, i am a human and i believe all humans have equal value but it took me years to realize that and bear in mind i question everything, even my own actions, thoughts, feelings. So maybe travelling inwards might solve issues as well? Asking important questions to ourselves or others like: Why do i keep distance from this person? What is the origin of my fear, mistrust, why am i judgemental? Again, how does one accept the idea that he\/she is wrong in some fundamental ways? Ego is an obstacle :).\n","comment_id":"22600","post_id":"6192","user_id":"8545","parent_comment_id":"0","creation_date":"Sunday, April 24, 2016 - 14:02","group_id":"0"}},{"node":{"title":"Thinking in the right direction","content":"\nI am no expert, but I think you are on to something @lujia. This idea of everyone being simultaneously care giver and care receiver is the cornerstone of OpenCare.\u00a0The commercial is cute too!\u00a0\n","comment_id":"22598","post_id":"6259","user_id":"34","parent_comment_id":"22594","creation_date":"Sunday, April 24, 2016 - 12:33","group_id":"0"}},{"node":{"title":"Fascinating!","content":"\nWow, thanks @lujia, this is really good insight. I had no idea this stuff was going on in China.\nI am particularly interested in the conflictual relationship between doctors and patients. This could be a very serious drag on the system. Liability laws, even when they are well-meaning, end up disincentivizing doctors to intervene, especially on cases that are serious and desperately need help. One of my uncles, a gynaecologist in New York, once told me that his liability insurance was far and away his highest cost, and that patients would sue for absolutely anything. In America, you can sue for astronomically high sums, because they have a legal insititution called punitive damage. If somebody causes you trouble, you can sue not only to recover the costs of the damage done, but also to \"punish\" the offender. Punishment depends on subjective evaluation of the offense, i.e. on\u00a0how deeply you have been made unhappy by the offense: the more unhappy, the more money you can demand. Unsusrprisingly,\u00a0\u00a0most people say they are\u00a0very\u00a0unhappy, and demand a lot of money.\nIn this situation, he explained,\u00a0if you see a woman with a potentially troubled pregnancy, you'd better stay the hell away from her. If you try to treat her and she or the baby have issues, she'll sue you into a smoking hole. But if you don't touch her, then you are good. Of course,\u00a0she\u00a0might suffer from lack of treatment, and that's too bad but not really your problem. But doctors, mostly, choose this career because they want to heal patients, so some (including my uncle) buy expensive insurance and carry on.\u00a0Eventually the premiums rose so high that he just decided to go out of business. In Europe, this problem is less exacerbated, also because\u00a0we do not have punitive damage.\u00a0\nWhat is the situation like in China? Can you tell us more about these \"professionals\"? Do you know of any community-based responses, like this one in Greece?\u00a0\n","comment_id":"22597","post_id":"6242","user_id":"34","parent_comment_id":"22595","creation_date":"Sunday, April 24, 2016 - 12:25","group_id":"0"}},{"node":{"title":"An Insider's View","content":"\nHi Pauline,\u00a0\nFirst of all, I am very happy to know that one of my classmates has been to my country and lived there for so long! Secondly, please trust me when I say I totally understand how much trouble and frustration you and your family might have faced. I have studied in the USA for over six years now, and it was very difficult for me in the beginning. However, at least America is organized and has more serious regulations. On the other hand, China is this crazy place with things that I don't even know how they work XD.\u00a0\nThe healthcare system and medicine and food safety are two of the most serious issues that is occuring in China right now (along with hundreds of other ones...). If you think about it, China is a country that is both old and young. Modern medicine, science, social structure, and etc didn't become a thing until very recent in the history. The China now was established in 1949, and after that the country went through a four-year famine and a ten-year cultural revolution. By the beginning of 1980s, the entire country was behind\u00a0on technology, education\u00a0and many other things. Medicine --\u00a0a\u00a0crucial area \u00a0-- unfortunately brought harm to many people due to the doctors' lack of professional knowledge. Many people in my generation, including one of my best friends, suffer hearing loss because of\u00a0antibiotics over-use. I have a permenant\u00a0arm injury myself because of the improper obstetrics practice.\u00a0\nToday, the relationship between the doctors and the patients are super intense in China. The patients\u00a0and their families\u00a0would blame everything on the doctors and the hospitals if they think they are not treated \"correctly\". There are even groups of so called \"professionals\" who are paid by the patients' families to make a mess at the hospital: break things and even physically harm the doctors.\u00a0\nI am not quite sure exactly how this works, but it seems to me that Chinese doctors like giving the patients all kinds of pills. It is very common in China to see a doctor just for a common cold, and you would recieve medicine for that\u00a0(I\u00a0never took anything when I was sick in America). People say that the doctors recieve benefits from giving medicine, but don't mark my words on this. I can definetly do more research later.\u00a0And then, there is the question of how safe\u00a0the drugs and vaccine in some places are. But I'm afraid that is out of my knowledge.\u00a0\nI'm not sure if any of this information is helpful. But one thing for sure, it is not just because you and your family are foreigners that getting a treatment is confusing and frustrating, it is becasue the entire system is a mess, even for locals like me.\u00a0\nLujia\n","comment_id":"22595","post_id":"6242","user_id":"8662","parent_comment_id":"0","creation_date":"Sunday, April 24, 2016 - 04:50","group_id":"0"}},{"node":{"title":"It's a two way street","content":"\nHi Dennis,\nMy comment has little to do with refugees, but this project I did last semester back in New York was about the relationship between the provider and the receiver as well.\u00a0\nThe area I focused on\u00a0was disability. I interviewed a few people on the street who were in a wheelchair, and did a half day experiment rolling myself in a wheelchair. It was quite an experience I have to say. I suddenly\u00a0found myself shorter than everyone else --\u00a0both physically and psychologically. Many people offered me help, and of course I told them the truth, but I felt if I were really disabled, I wouldn't simply say yes because I wouldn't want to trouble others and\u00a0would want to be as independent as possible. On the other hand, when I see a handicapped person, and a few of my classmates agreed on this, sometimes I am not sure if I should help him\/her because I don't want to assume that they can't perform\u00a0certain actions and offend them.\u00a0\nAs time goes on, I realize the unbalance in the relationship between the abled and the disabled. The abled is always the benefit provider and the disabled is always the benefit receiver. Hence, this automatically, like you mentioned, \"belittled\" the handicapped. Therefore I began to think some solutions that can make the disabled offer something back so that the relationship between these two group could be even. We didn't spend much time on this project so my answer to my question might sound cheesy.\u00a0\u00a0I focused on wheelchair only, and added a heart-rate monitor on the handle so that the person who pushes the wheelchair could use that\u00a0time to work out.\u00a0\nHere is the link to the commercial I made for the product. Hope this gives you some inspirations :). \u00a0https:\/\/vimeo.com\/142760828\nLujia\n","comment_id":"22594","post_id":"6259","user_id":"8662","parent_comment_id":"0","creation_date":"Sunday, April 24, 2016 - 02:35","group_id":"0"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"5366"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"366"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"5366"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"4260"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"366"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"5366"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"4260"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"366"}},{"node":{"title":"Some broken links...","content":"\nThanks @CommonFutures, good tip. I'd like to get in touch with them. Unfortunately, the \"health\" link from that page to a more detailed breakdown of the services offered is broken (http:\/\/salut.cooperativaintegral.cat\/), and it there does not seem to be another from the home page of CIC. Do you know them personally?\u00a0\n","comment_id":"22591","post_id":"5504","user_id":"34","parent_comment_id":"22493","creation_date":"Saturday, April 23, 2016 - 16:09","group_id":"4260"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"4260"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"5366"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"366"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"5366"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"4260"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"366"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"5366"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"4260"}},{"node":{"title":"Exactly","content":"\nWelcome, @Charles_M_Lines. I agree. When this kind of collaboration kicks in, the whole evaluation model collapses. Helliniko is not an improvement on existing provision models: it is radically different from them, and uncomparable to them.\u00a0\nBut what do you mean by \"skilled and well placed partners who are willing and able to act as brokers within the system to get things done\"? Do you have any example in mind?\n","comment_id":"22590","post_id":"5504","user_id":"34","parent_comment_id":"22589","creation_date":"Saturday, April 23, 2016 - 16:06","group_id":"366"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"366"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"5366"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"4260"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"366"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"5366"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"4260"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"366"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"4260"}},{"node":{"title":" Metropolitan Community Clinic at Helliniko","content":"\n\nThis is an extremely interesting development which shows how collaboration is evolving at pace before our eyes: social media and internet driven; bottom up and middle outwards rather than top down; redefining value, cost and currency; beginning to redefine what is acceptable, allowed and treated as 'legal'; finding and using not only skilled partners but also skilled and well placed partners who are willing and able to act as brokers within the system to get things done.\u00a0\n\n","comment_id":"22589","post_id":"5504","user_id":"8669","parent_comment_id":"0","creation_date":"Saturday, April 23, 2016 - 13:59","group_id":"5366"}},{"node":{"title":"Similar","content":"\nHi Dennis,\nWe see this same problem with many of the short term\u00a0volunteers in Calais.\nA lot of very well meaning people want to come to 'help' and 'care', but they act in a way that robs the people they want to\u00a0help\u00a0of their agency;\u00a0their freedom to act normally.\nWhen i first started working on the camp\u00a0i fell into the same trap. I was helping to build shelters, but i was also a little scared for myself:\u00a0my safety, my equipment, 'getting the job done correctly'. It was only by standing back from the action and just talking to some of the camp residents\u00a0who were trying to help us that i found out more about them. Many of them had been engineers or builders before they embarked on their journey to a safer life.\nI realised that these people were more qualified than i was, had more reason to make sure the shelter was built well and could be trusted with our equipment because it was of great value to them that we had brought it to the camp.\nI had to turn off the switch in my head that was about 'me' and truely be there for them. But it could only be done by firstly opening a dialogue, then through mutual understanding and cooperation.\nAs the day went on the residents who were working with us drifted away (to do tasks like cooking, eating, prayer, preparation for the nighttime, talking to family at home\/friends in other countries) and we found ourselves continuing the work as our orginal team. That was the moment that we really started to help them. We could treat this task as a job, we could committ 100% of\u00a0our time and resources to finishing the job quickly, because that's why we had come out\u00a0there. As a result 16 people had a drier, warmer place to sleep that night.\nBut we could have walked on site, dropped all the materials and equipment off and sat drinking chai and talking to the residents for the whole afternoon whilst they built the shelters themselves and we would have been just as helpful, just as caring, just as useful to the people.\nPeople first, mission second.\n","comment_id":"22580","post_id":"6259","user_id":"6559","parent_comment_id":"0","creation_date":"Friday, April 22, 2016 - 20:49","group_id":"0"}},{"node":{"title":"What's the next move?","content":"\nWelcome back, @trythis.\u00a0\nWell, I am\u00a0way\u00a0out of my depth. But will help as I can, of course. How can we help? Would you like a dedicated community call, see who's out there who can pool skills? Anything else?\n","comment_id":"22574","post_id":"4701","user_id":"34","parent_comment_id":"22466","creation_date":"Friday, April 22, 2016 - 15:23","group_id":"5954"}},{"node":{"title":"What's the next move?","content":"\nWelcome back, @trythis.\u00a0\nWell, I am\u00a0way\u00a0out of my depth. But will help as I can, of course. How can we help? Would you like a dedicated community call, see who's out there who can pool skills? Anything else?\n","comment_id":"22574","post_id":"4701","user_id":"34","parent_comment_id":"22466","creation_date":"Friday, April 22, 2016 - 15:23","group_id":"5954"}},{"node":{"title":"Temporary projects\/ services or complete lifestyle redesign?","content":"\nHi @Pauline,\u00a0\nSince you're into family care I thought Alberto's post about 3 adult couples going into an alternative living situation together might help. They are doing this as a personal project and a way of tweaking their own needs.\u00a0Here it is, let us know if\u00a0you want to connect to other people who have experienced this or new models, as a way to go deeper into your design.\nI don't know if this is about family per se anymore.\u00a0Most often\u00a0I hear about initiatives\u00a0where you have\u00a0supplementary support offered to a group - through\u00a0projects that are\u00a0services, like\u00a0co-work\/ living spaces for mobile travellers (although it\u00a0doesnt get to solving the deeper care problem).\nA more\u00a0interesting movement I keep coming across is around\u00a0downshifting and how that redefines the way we relate to the very idea of family and connections\u00a0- the latest I've read about is @vvorski's idea of smart villages, let me know if this is interesting for you:\nUltimately, what we crave are more meaningful moments and life-experiences; more time to spend following our curiosity. Time to build nourishing relationships and friendships. Time to enjoy the simple things in life and really experience the world. Time to be present with our loved ones, our friends, acquaintances and the strangers we meet along the way. Yet too often our jobs starve us of what is most precious\u200a\u2014\u200athe time and space to express who we truly are\u200a\u2014\u200asocial, curious, playful and purposeful humans. [..]\nWe believe that there is a growing demand for smart villages where we can design our ideal balanced lives. Places where we can live in harmony with nature. We can create a safe and happy home for our families. And we don\u2019t have to sacrifice our careers and dreams to make this happen. We can continue to build and participate in virtual companies, occasionally travelling to cities for important meetings or conferences.\n","comment_id":"22560","post_id":"6243","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, April 21, 2016 - 13:44","group_id":"0"}},{"node":{"title":"Survival mode","content":"\nIt's so sad to see that there is no way to move beyond that. And yet you hear stories like this school built by a Nigerian:\u00a0http:\/\/www.bbc.com\/news\/world-europe-35714129 It's probably fragile and temporary though\u00a0(if still there), but good example.\n\u00a0\n","comment_id":"22547","post_id":"6223","user_id":"32","parent_comment_id":"22507","creation_date":"Wednesday, April 20, 2016 - 20:52","group_id":"0"}},{"node":{"title":"How can we make people curios?","content":"\nChoice for the question:\n-How to turn FEAR into TRUST?\n\u00a0\nPeople i know that might be in FEAR:\n-Johan\n-Dino\n-Ev\n-Gini\n-Lotte\n-Chani\n-Antje\n-Hoja\n-Luxcy\n-Suse\n-Flexi \u2026\n\u00a0\nWhy do they have FEAR?\n-worried about someone they love\n-fear about failing\n\u00a0\nWhat is FEAR?\n-a border keeping you from moving on\u00a0\n\u00a0\nHow can you manage this border?\n-curiosity\n-getting a push\/poke\n-expanding comfort zone\n\u00a0\n\u00a0\n#1 FRAME YOUR DESIGN CHALLENGE: How to turn FEAR into TRUST?\n\u00a0\n1)Frame it as a design question.\n-Find a way to help people by convincing their own boundaries!\n-How can we lure\/attract someone out of his\/her comfort zone?\n-How can we turn the \u201ejump into the COLD water\u201c into one \u201einto the\u00a0 LUKEWARM\u201c?\n-How can we\u00a0 help to uncover potential capacity to help further people?\n\u00a0\n2)What are some possible solutions for your problem?\n-make people curios by attraction\n-lure people with humor\/jokes\/fun\n-personal motivation\n-touching their senses like sounds, smells, tastes\u2026\n-finding a STARTINGPOINT\n-giving safety\n\u00a0\n3)Write down some of the context ans constraints that you\u00b4re facing.\n-Environmental - ecological\/social problems\n-Helping people in their actual situation\n-Socialising isolated people\u00a0\n","comment_id":"22508","post_id":"6240","user_id":"8590","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 22:12","group_id":"0"}},{"node":{"title":"Got it!","content":"\nVery clear, thanks @Alex_Levene.\n","comment_id":"22507","post_id":"6223","user_id":"34","parent_comment_id":"22479","creation_date":"Tuesday, April 19, 2016 - 18:01","group_id":"0"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"5366"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"366"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"5366"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"4260"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"366"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"5366"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"4260"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"366"}},{"node":{"title":"Cooperative Integral Catalunya","content":"\nInteresting - thanks - another example which might be worth a look:\u00a0http:\/\/cooperativa.cat\/en\/cooperative-public-system\/health\/\u00a0\n","comment_id":"22493","post_id":"5504","user_id":"4260","parent_comment_id":"0","creation_date":"Tuesday, April 19, 2016 - 13:17","group_id":"4260"}},{"node":{"title":"To a degree, yes","content":"\nSome of the facilities and services on camp are staffed and operated my residents of the camps. Both the Ashram Kitchen (link above) and the Jungle books use people from the camps to organise (cook, clean, serve, staff etc) their operations. Some parts of it a situated in specific areas of the camp and the people who live close to those amenities operate as security and safety overnight.\nIt's very much a case that the residents are very active on site. Whenever organisations start to build additional shelters, or do maintenance\/repairs the locals get heavily involved. At the moment we aren't allowed to bring large-scale building material onto\u00a0the site so resourceful communities and individuals are doing a lot of self building using scavenged wood and tarpualin\/waterproof fabrics. There are lots of skilled people on the camps, some of them have been engineers, large scale construction workers so us volunteers are always happy to bring equipment, hand it out and then stand back and let the professionals handle the work.\nIt is probably true to say that there aren't any refugee-led projects on site, or if there are, i am not aware of them yet. It's certainly something i could find out more about by asking around.\nMy view is that most people living on the camp consider it to be a temporary pit stop before they get to the UK (even if it's 'temporary' for 9 months or more) and so aren't\u00a0keen on setting up services long term on the camp when they could be in a lorry tomorrow night\u00a0heading to Britain. Longer term residents who are more settled in the camp and are looked at as community leaders do a lot more than i am aware of, but in order to find out more about what they were doing to support each other it would be really benefitial to have a few translators who could have more detailled conversations with them. It's those guys who are the real heroes of the story. The volunteer workforce\u00a0are just smiling, friendly couriers really.\n","comment_id":"22479","post_id":"6223","user_id":"6559","parent_comment_id":"22460","creation_date":"Monday, April 18, 2016 - 22:17","group_id":"0"}},{"node":{"title":"Good work","content":"\nThanks Luce for reporting on the successfull submission of deliverable 2.1\nIt's not as if I did not know about it :-) I added a few words myself to the accompanying document. I invite all to have a look, the few additions I made to Nadia and Alberto's text aimed at facilitating the work of reviewers: helping them to get the idea, identify the relevant resources and in this case easily access them on the web.\n","comment_id":"22477","post_id":"6137","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 17:26","group_id":"5954"}},{"node":{"title":"Good work","content":"\nThanks Luce for reporting on the successfull submission of deliverable 2.1\nIt's not as if I did not know about it :-) I added a few words myself to the accompanying document. I invite all to have a look, the few additions I made to Nadia and Alberto's text aimed at facilitating the work of reviewers: helping them to get the idea, identify the relevant resources and in this case easily access them on the web.\n","comment_id":"22477","post_id":"6137","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 17:26","group_id":"5954"}},{"node":{"title":"Good work","content":"\nThanks Luce for reporting on the successfull submission of deliverable 2.1\nIt's not as if I did not know about it :-) I added a few words myself to the accompanying document. I invite all to have a look, the few additions I made to Nadia and Alberto's text aimed at facilitating the work of reviewers: helping them to get the idea, identify the relevant resources and in this case easily access them on the web.\n","comment_id":"22477","post_id":"6137","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 17:26","group_id":"5954"}},{"node":{"title":"Submitted !","content":"\nWP2, Deliverable 2.1:\u00a0Deployed, tested OpenCare online space on the production server - SUBMITTED :)\nA copy of the document is stored under the OpenCare Admin file, see Deliverables.\n","comment_id":"22475","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 16:52","group_id":"5954"}},{"node":{"title":"Submitted !","content":"\nWP2, Deliverable 2.1:\u00a0Deployed, tested OpenCare online space on the production server - SUBMITTED :)\nA copy of the document is stored under the OpenCare Admin file, see Deliverables.\n","comment_id":"22475","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 16:52","group_id":"5954"}},{"node":{"title":"Submitted !","content":"\nWP2, Deliverable 2.1:\u00a0Deployed, tested OpenCare online space on the production server - SUBMITTED :)\nA copy of the document is stored under the OpenCare Admin file, see Deliverables.\n","comment_id":"22475","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 16:52","group_id":"5954"}},{"node":{"title":"Taking shape","content":"\nHey people interested in co-creation:\nThere is a drone-challenge for a civil application out now. It has just started, more info:\nhttps:\/\/www.youtube.com\/watch?v=4iznBFghD4o\n","comment_id":"22466","post_id":"4701","user_id":"6534","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 14:52","group_id":"5954"}},{"node":{"title":"Taking shape","content":"\nHey people interested in co-creation:\nThere is a drone-challenge for a civil application out now. It has just started, more info:\nhttps:\/\/www.youtube.com\/watch?v=4iznBFghD4o\n","comment_id":"22466","post_id":"4701","user_id":"6534","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 14:52","group_id":"5954"}},{"node":{"title":"I am not convinced about this","content":"\nI am not convinced about this particular choice I have made - in fact, I am mostly deeply irritated during these debates.But it helps me escape the bubble I live in, inhabited by people that agree with each other. Though, I am still pretty far from understanding why they think what they think.\u00a0\n","comment_id":"22464","post_id":"6192","user_id":"678","parent_comment_id":"0","creation_date":"Monday, April 18, 2016 - 12:18","group_id":"0"}},{"node":{"title":"What about the refugees themselves?","content":"\nThis is a great story! What it seems to have to teach is this: refugee camps could sprout many more and better services if people were allowed to provide for each other. Score one for self organization.\nHowever, from what I read I have the impression that this is a story about the\u00a0volunteers. It is them (you!)\u00a0doing all this amazing stuff. Are refugees themselvesd involved in building and staffing these services and efforts?\u00a0\n","comment_id":"22460","post_id":"6223","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, April 17, 2016 - 18:27","group_id":"0"}},{"node":{"title":"On proving your close ones wrong","content":"\n@Natalia Skoczylas your story reminded me of something and now I'm wondering.\n\u00a0I decided not to break a friendship when I saw a (rather distant) friend of mine was a supporter of a right wing extremist social group on facebook. I guess, like Alberto explains above, I was giving up on any possibility to change their mind. The fact of the matter is, and I've tested it before, that you can't beat emotional arguments with rationality. Honestly, that feels like a dead end.\u00a0\nBut maybe one still needs to at least make a case before deciding to tolerate attitudes around you that go deeply against your owns. Mea culpa.\n","comment_id":"22459","post_id":"6192","user_id":"32","parent_comment_id":"22294","creation_date":"Sunday, April 17, 2016 - 12:44","group_id":"0"}},{"node":{"title":"What is your entourage like?","content":"\nOh, this is familiar. I've read so many stories on Edgeryders where young people ask this very same questions, myself included. \u00a0Then what helped me was\u00a0spending time with others and realising that we're all in the same boat and this is not a personal dillemma, it's a collective one. Finding each other really gives you a sense of support, somehow it helped my mind get over the\u00a0fact that there is a problem. Then things would only get easier in time, because\u00a0you surround yourself with people who are like you - not only that they feel the same (most everyone does!) but that they talk about it in the same uncompromising way. What is your entourage like?\nHave you read @Dougald's piece?\u00a0You'll love it.\nOh an @Katja_Feldmeier, you should really talk to @NeleG, she touches on some similar questions in her post!\n","comment_id":"22458","post_id":"6197","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, April 17, 2016 - 12:25","group_id":"0"}},{"node":{"title":"Does your personal experience help your thinking?","content":"\n@Cindy, I was reading on your user profile about the support you get from the family you work for. Does this more positive experience reveal new approaches in your design? Or can those people on the \"right\" side of the debate also offer helpful insights? The advantage is that they can relate to both German peers and foreign peers, and so have more complete information.\u00a0I would think\u00a0they can become bridge builders in a solution design.\n\u00a0\n","comment_id":"22457","post_id":"6244","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, April 17, 2016 - 12:10","group_id":"0"}},{"node":{"title":"Looking at the other components of life","content":"\nI fully recognize myself -maybe a year back or so - in this picture. The advice I've been given is to learn first\u00a0 to go easier on myself if I want or expect others to do the same. Like you say, practicing some sort of spiritual education helps. Supposedly it would also allow you to change the focus from the \"professional\" aspects to personal wellbeing and better self care to balance your life. The problem is that sometimes you can't do it alone, and shouldn't. So the challenge is finding those like minded communities which Alberto mentions\u00a0and dreaming up\u00a0solutions to make it better for more people. If you know of good projects do recommend, I'm very interested.\nThis talk on vulnerability really hits the nail, I wholeheartedly recommend it, if you havent seen it already:\n\n\n\n\n","comment_id":"22456","post_id":"6261","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, April 17, 2016 - 11:56","group_id":"0"}},{"node":{"title":"So why?","content":"\nHello @Cindy. Great to read about your discussion there. So, what's your conclusion? Why do people who stay react badly to people on the move? How do you think you can turn fear into trust? And is fear really the right word?\n","comment_id":"22455","post_id":"6244","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, April 16, 2016 - 18:58","group_id":"0"}},{"node":{"title":"Patients must cooperate","content":"\nIt comes down to this: patients need to actively cooperate with care givers for the system to work at all. As a Westerner in China, your patterns of cooperation did not match with those of the Chinese doctors and pharmacists. You could not collaborate effectively: a doctor would tell you \"yes, try this\" when they meant \"I don't know\" or \"there's nothing that can be done\". And you\u00a0would not understand, and this would lead to misfiring and frustration.\u00a0\nI can only imagine how much worse this is for people on the move in a less secure position: economic migrants, refugees etc. They must find Western carers (doctors, nurses, social workers) very hard to read.\n","comment_id":"22454","post_id":"6242","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, April 16, 2016 - 18:56","group_id":"0"}},{"node":{"title":"Efficient at what?","content":"\nHello @NeleG, nice to meet you.\u00a0\nYour reflection is recurring in Edgeryders. I guess this is a common thread to the people on the edge. For example, the unMonastery was in part a product of the need for finding one's own rhythm. It turned out to be very challenging, but at least it was not the usual challenge \u2013 it was a different one.\u00a0\nMy personal way to look at it is to draw inspiration from biology. In the natural world, there is no one but you to underwrite your pains. Even parasites have to be good at parasitism, or they will die as individuals or go extinct as a species. At the same time, a successful species in biology is definied as one well adapted to its ecological niche,\u00a0not\u00a0in terms of how close it is to to the top of the food chain. A frog is not a failed crocodile: it is a successful animal by its own yardstick. Put a crocodile in a European pond, he'll starve to death, whereas frogs do just fine. By the same token, it would be weird to say that a craftsman is a failed CEO! He is just not.\nWe should not take the analogy too far, of course. But I guess what annoys you is that you do not agree with the idea of success that mainstream society is promoting. In that case, the first move is probably to accept it, and decide you are going to measure yourself\u00a0in some other way.\u00a0Maybe, then, it will not be a vulnerability at all that you do not like ticking boxes! In my experience, it helps to find communities of like-minded people, because it takes a lot of effort to be alone in upholding an alternative vision of society!\u00a0\n","comment_id":"22452","post_id":"6261","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, April 16, 2016 - 12:24","group_id":"0"}},{"node":{"title":"It should not be that hard","content":"\nHello @dennis, welcome!\nYou are \u00a0a designer \u2013 you tell me! I guess it starts by stripping ourselves and others of labels (I am a volunteer, you are a refugee, she is a person in need...) and decide we are all people, and we have got some\u00a0job to do. If we do that, we can design the capacity of the people we are supposed to help into the action itself. For example, suppose that you want to erect a really large tent or an hexayurt in a refugee camp in Lesbos. How many people you need? If you think of the refugees as resource, you only need yourself to drive into the camp with the materials. Once there, you can ask for help, and chances are you'll find it!\u00a0\n","comment_id":"22447","post_id":"6259","user_id":"34","parent_comment_id":"0","creation_date":"Friday, April 15, 2016 - 16:58","group_id":"0"}},{"node":{"title":"The \"beneficiary\" model","content":"\nUnfortunately this dichotomy between\u00a0provider\/\u00a0receiver of services is still very common in the non-profit sector. Just look at how funding applications for initiatives supporting refugees are framed. It seems that the moment you define them as category in need- no matter the language variations, you have a problem already.\nCurious if our friends in Milano who are now doing many workshops to engage with groups in the city are seeing this kind of differentiation felt at the very level of individuals who are \"in need\" of care? Ping @zoescope @Alberto_Simonetti, as we were lately wondering how to frame discourse..\n","comment_id":"22442","post_id":"6259","user_id":"32","parent_comment_id":"0","creation_date":"Friday, April 15, 2016 - 15:32","group_id":"0"}},{"node":{"title":"Medical practices in China","content":"\nHi @Pauline, a very interesting read, thanks for taking the time to upload your conversation. You're also pretty much the first edgeryders connection to China!\nI'm not sure I got it right (used Google translate): in your last paragraph you say that the medical system tends to behave same as the social, meaning that doctors treat patients using cultural language in addition to medical language - more scientifical language - and that makes it that sometimes\u00a0treatments\u00a0are\u00a0less acurate? very interesting indeed.\n","comment_id":"22417","post_id":"6242","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, April 14, 2016 - 11:50","group_id":"0"}},{"node":{"title":"\"Culture in culture\"","content":"\nHeya, thanks for the piece of thought.\u00a0\nIt reminded me of the story of Rete G2 shared by @Medhin Paolos some time ago about second generation migrants in Italy who were organising themselves at the grassroots level - although the movement was meant to\u00a0advocate for their citizenship rights, it seemed to be equally so\u00a0about building bridges. They \u00a0did so by producing cultural artifacts that illustrate at deeper levels issues of identity. Here's the story, although I'm curious\u00a0how it's doing nowadays..\u00a0\u00a0\nI find that food and\u00a0arts are great equalizers in terms of making room for different identities to co-exist in a way that birthes new ones.\n","comment_id":"22405","post_id":"6240","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, April 13, 2016 - 21:07","group_id":"0"}},{"node":{"title":"Looking forward :)","content":"\nSee you\u00a0thursday in the call btw.\n","comment_id":"22403","post_id":"6223","user_id":"45","parent_comment_id":"22401","creation_date":"Wednesday, April 13, 2016 - 16:55","group_id":"0"}},{"node":{"title":"It's a big story to tell","content":"\nHey Nadia,\nShame not to see you as well. I'm sure i can fit aother visit in when you're around.\nSorry this story isn't filled in properly yet, i've basically been writing massive proceedural documents for the camp people which has taken a lot of my time.\nI think i'm about half way through the full write up, so all things being well it should be on the site tonight. Fingers crossed\nAlex\n","comment_id":"22401","post_id":"6223","user_id":"6559","parent_comment_id":"0","creation_date":"Wednesday, April 13, 2016 - 16:08","group_id":"0"}},{"node":{"title":"We decided to prioritise the work of doing outreach","content":"\nAs part of our outreach and engagement work, Edgeryders brokered an agreement with\u00a0the College of Architecture, Media and Design at Berlin University of the Arts (UdK Berlin) around a new course in which we involve students in the OpenCare research project:\u00a0http:\/\/hackingutopia.cre8tives.org\/about\/\nThe agreement was finalised in mid february. While the website was already online by then as agreed, we decided to prioritise preparation of the course as an effective outreach and engagement opportunity and to finalise validation of the website design and contents based first experiences of using it as the primary collaboration, interaction and documentation space for the course activities. My documentation from the first day of the opening 4-day workshop:\u00a0https:\/\/edgeryders.eu\/en\/you-and-me-and-everyone-we-know-the-many-faces-of-care\nThe Final exhibition has now been announced http:\/\/www.designtransfer.udk-berlin.de\/en\/projekt\/hacking-utopia\/\nExhibition has now been announced here: \u00a0\n","comment_id":"22400","post_id":"6137","user_id":"45","parent_comment_id":"22397","creation_date":"Wednesday, April 13, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"We decided to prioritise the work of doing outreach","content":"\nAs part of our outreach and engagement work, Edgeryders brokered an agreement with\u00a0the College of Architecture, Media and Design at Berlin University of the Arts (UdK Berlin) around a new course in which we involve students in the OpenCare research project:\u00a0http:\/\/hackingutopia.cre8tives.org\/about\/\nThe agreement was finalised in mid february. While the website was already online by then as agreed, we decided to prioritise preparation of the course as an effective outreach and engagement opportunity and to finalise validation of the website design and contents based first experiences of using it as the primary collaboration, interaction and documentation space for the course activities. My documentation from the first day of the opening 4-day workshop:\u00a0https:\/\/edgeryders.eu\/en\/you-and-me-and-everyone-we-know-the-many-faces-of-care\nThe Final exhibition has now been announced http:\/\/www.designtransfer.udk-berlin.de\/en\/projekt\/hacking-utopia\/\nExhibition has now been announced here: \u00a0\n","comment_id":"22400","post_id":"6137","user_id":"45","parent_comment_id":"22397","creation_date":"Wednesday, April 13, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"We decided to prioritise the work of doing outreach","content":"\nAs part of our outreach and engagement work, Edgeryders brokered an agreement with\u00a0the College of Architecture, Media and Design at Berlin University of the Arts (UdK Berlin) around a new course in which we involve students in the OpenCare research project:\u00a0http:\/\/hackingutopia.cre8tives.org\/about\/\nThe agreement was finalised in mid february. While the website was already online by then as agreed, we decided to prioritise preparation of the course as an effective outreach and engagement opportunity and to finalise validation of the website design and contents based first experiences of using it as the primary collaboration, interaction and documentation space for the course activities. My documentation from the first day of the opening 4-day workshop:\u00a0https:\/\/edgeryders.eu\/en\/you-and-me-and-everyone-we-know-the-many-faces-of-care\nThe Final exhibition has now been announced http:\/\/www.designtransfer.udk-berlin.de\/en\/projekt\/hacking-utopia\/\nExhibition has now been announced here: \u00a0\n","comment_id":"22400","post_id":"6137","user_id":"45","parent_comment_id":"22397","creation_date":"Wednesday, April 13, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"One last thing to do","content":"\nHello,\u00a0\n@Alberto \/\u00a0@Noemi \/\u00a0@Nadia:\u00a0I get back at you about the deliverable, again: we also have to justify our delay upon submitting it.\nI will therefore need you to explain in a\u00a0paragraph why links to the OpenCare platform are submitted in in April instead of February (planned in the DoA).\nAs I already posted, it sounds acceptable to explain\u00a0that the platform was mainly ready in due time,\u00a0that edgeryders introduced it during\u00a0the kick-off by the end of February, with extra adjustments related to users' experiences being carried out in March.\u00a0\nYou also have to describe the\u00a0impact this delay has on your activity as foreseen for WP2 (using more person-months, needing extra staff, or else).\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"22397","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 13, 2016 - 14:38","group_id":"5954"}},{"node":{"title":"One last thing to do","content":"\nHello,\u00a0\n@Alberto \/\u00a0@Noemi \/\u00a0@Nadia:\u00a0I get back at you about the deliverable, again: we also have to justify our delay upon submitting it.\nI will therefore need you to explain in a\u00a0paragraph why links to the OpenCare platform are submitted in in April instead of February (planned in the DoA).\nAs I already posted, it sounds acceptable to explain\u00a0that the platform was mainly ready in due time,\u00a0that edgeryders introduced it during\u00a0the kick-off by the end of February, with extra adjustments related to users' experiences being carried out in March.\u00a0\nYou also have to describe the\u00a0impact this delay has on your activity as foreseen for WP2 (using more person-months, needing extra staff, or else).\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"22397","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 13, 2016 - 14:38","group_id":"5954"}},{"node":{"title":"One last thing to do","content":"\nHello,\u00a0\n@Alberto \/\u00a0@Noemi \/\u00a0@Nadia:\u00a0I get back at you about the deliverable, again: we also have to justify our delay upon submitting it.\nI will therefore need you to explain in a\u00a0paragraph why links to the OpenCare platform are submitted in in April instead of February (planned in the DoA).\nAs I already posted, it sounds acceptable to explain\u00a0that the platform was mainly ready in due time,\u00a0that edgeryders introduced it during\u00a0the kick-off by the end of February, with extra adjustments related to users' experiences being carried out in March.\u00a0\nYou also have to describe the\u00a0impact this delay has on your activity as foreseen for WP2 (using more person-months, needing extra staff, or else).\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"22397","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 13, 2016 - 14:38","group_id":"5954"}},{"node":{"title":"Curious about the story!","content":"\nHi Alex, how are you? Sorry to have missed your visit- just back \u00a0an hour ago after an intense week + in Berlin.\u00a0\nVery curious to hear about your experiences and reflections. In part because I would like to volunteer this spring but am unsure as to where I can meaningfully put my skills etc to use. In part because both Ezio and myself are adamant that this should be one of thd focal points in opencare\n\u00a0\n","comment_id":"22393","post_id":"6223","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, April 12, 2016 - 19:08","group_id":"0"}},{"node":{"title":"Great !","content":"\nI'll double-check and submit it :)\nThanks again,\u00a0\nLuce\n","comment_id":"22385","post_id":"6137","user_id":"8382","parent_comment_id":"22382","creation_date":"Tuesday, April 12, 2016 - 14:05","group_id":"5954"}},{"node":{"title":"Great !","content":"\nI'll double-check and submit it :)\nThanks again,\u00a0\nLuce\n","comment_id":"22385","post_id":"6137","user_id":"8382","parent_comment_id":"22382","creation_date":"Tuesday, April 12, 2016 - 14:05","group_id":"5954"}},{"node":{"title":"Great !","content":"\nI'll double-check and submit it :)\nThanks again,\u00a0\nLuce\n","comment_id":"22385","post_id":"6137","user_id":"8382","parent_comment_id":"22382","creation_date":"Tuesday, April 12, 2016 - 14:05","group_id":"5954"}},{"node":{"title":"This iteration done!","content":"\nping @LuceChiodelliUB as agreed yesterday.. hope it helps. I checked the links again and it seems they're all working, but won't hurt to have another couple of clicks when submitting, just to be sure.\n","comment_id":"22382","post_id":"6137","user_id":"32","parent_comment_id":"22370","creation_date":"Tuesday, April 12, 2016 - 12:28","group_id":"5954"}},{"node":{"title":"This iteration done!","content":"\nping @LuceChiodelliUB as agreed yesterday.. hope it helps. I checked the links again and it seems they're all working, but won't hurt to have another couple of clicks when submitting, just to be sure.\n","comment_id":"22382","post_id":"6137","user_id":"32","parent_comment_id":"22370","creation_date":"Tuesday, April 12, 2016 - 12:28","group_id":"5954"}},{"node":{"title":"This iteration done!","content":"\nping @LuceChiodelliUB as agreed yesterday.. hope it helps. I checked the links again and it seems they're all working, but won't hurt to have another couple of clicks when submitting, just to be sure.\n","comment_id":"22382","post_id":"6137","user_id":"32","parent_comment_id":"22370","creation_date":"Tuesday, April 12, 2016 - 12:28","group_id":"5954"}},{"node":{"title":"Ready to go?","content":"\nHello,\u00a0\nAs I see you keeping the wiki updated - just\u00a0tell me when we are good to go with the delivery to the EC. Thanks ! :)\n","comment_id":"22370","post_id":"6137","user_id":"8382","parent_comment_id":"22297","creation_date":"Monday, April 11, 2016 - 10:12","group_id":"5954"}},{"node":{"title":"Ready to go?","content":"\nHello,\u00a0\nAs I see you keeping the wiki updated - just\u00a0tell me when we are good to go with the delivery to the EC. Thanks ! :)\n","comment_id":"22370","post_id":"6137","user_id":"8382","parent_comment_id":"22297","creation_date":"Monday, April 11, 2016 - 10:12","group_id":"5954"}},{"node":{"title":"Ready to go?","content":"\nHello,\u00a0\nAs I see you keeping the wiki updated - just\u00a0tell me when we are good to go with the delivery to the EC. Thanks ! :)\n","comment_id":"22370","post_id":"6137","user_id":"8382","parent_comment_id":"22297","creation_date":"Monday, April 11, 2016 - 10:12","group_id":"5954"}},{"node":{"title":"Thanks! @Noemi","content":"\nThanks Noemi! I will look into it!!!\n","comment_id":"22363","post_id":"6226","user_id":"8582","parent_comment_id":"22360","creation_date":"Sunday, April 10, 2016 - 22:15","group_id":"0"}},{"node":{"title":"I don't know","content":"\nI was wondering too. The reason why comments are now disabled in the Meetups is to focus all conversations there on stories (Challenges page) with all the pages read-only for easy navigation by first time users..\nIdeally we post documentation after the events in our research group.\u00a0\nThis is still open for ideas, there's no best solution, what do you think?\n","comment_id":"22361","post_id":"6185","user_id":"32","parent_comment_id":"22346","creation_date":"Sunday, April 10, 2016 - 18:37","group_id":"5954"}},{"node":{"title":"I don't know","content":"\nI was wondering too. The reason why comments are now disabled in the Meetups is to focus all conversations there on stories (Challenges page) with all the pages read-only for easy navigation by first time users..\nIdeally we post documentation after the events in our research group.\u00a0\nThis is still open for ideas, there's no best solution, what do you think?\n","comment_id":"22361","post_id":"6185","user_id":"32","parent_comment_id":"22346","creation_date":"Sunday, April 10, 2016 - 18:37","group_id":"5954"}},{"node":{"title":"A recommended reading","content":"\nHi @Neolie, tough question! A\u00a0case from Nepal where we did some work last year might help: change makers\u00a0in that space were all motivated by the need to re-build their communities and help each other just\u00a0after the earthquake, but\u00a0from our team on the ground we learned\u00a0that it in fact doesn't last long enough to make people keep on working to care for the greater picture. Intrinsic motivation seems to fail there, especially when the work is hard,\u00a0unthankful, unpaid and mostly it doesn't solve people's\u00a0personal needs - especially if those people are at Maslow's rock bottom.\nThere are more insights\u00a0from working in Nepal\u00a0which might be of help to you. Here it is:\u00a0Earthquakes create movements - but can we?\n","comment_id":"22360","post_id":"6226","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, April 10, 2016 - 18:15","group_id":"0"}},{"node":{"title":"Look forward to learn more","content":"\nHi @simon.messmer, thanks for sharing thoughts from your process. How's it coming along? Are you trying to design a project, or a product, or..?\nGood luck with your course!\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"22357","post_id":"6231","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, April 10, 2016 - 17:06","group_id":"0"}},{"node":{"title":"The eyecontact experiment","content":"\nA very basic event which happened in a lot of cities over the last years, including\u00a0where I live (Cluj) was to have hundreds of people - strangers - staring in each others eyes for one long minute, two by two. After that, one\u00a0would\u00a0stand, leave and go to sit with someone else. And so on. It was an interesting human connection experiment, although it mostly brought young people in.\nMore about this and a video:\u00a0https:\/\/inspiralight.wordpress.com\/2015\/06\/21\/the-touching-truth-behind-the-eye-contact-experiment\/\n\n\u00a0\n","comment_id":"22356","post_id":"6225","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, April 10, 2016 - 16:34","group_id":"0"}},{"node":{"title":"Sounds great","content":"\nHi Phil,\nThis sounds wonderful. Make sure you let ER community\u00a0know when you are planning this to happen. I know i'd love to come along if i can.\nAlex\n","comment_id":"22351","post_id":"6225","user_id":"6559","parent_comment_id":"0","creation_date":"Saturday, April 9, 2016 - 19:54","group_id":"0"}},{"node":{"title":"Meetups issue","content":"\nHi,\u00a0\nis it possible to allow comments to Meetups?\nHi think that it's the right place to post question or comments about the Meetups!\u00a0\nWhat do you think?\u00a0\n@Nadia @Noemi\n","comment_id":"22346","post_id":"6185","user_id":"2604","parent_comment_id":"0","creation_date":"Saturday, April 9, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"Meetups issue","content":"\nHi,\u00a0\nis it possible to allow comments to Meetups?\nHi think that it's the right place to post question or comments about the Meetups!\u00a0\nWhat do you think?\u00a0\n@Nadia @Noemi\n","comment_id":"22346","post_id":"6185","user_id":"2604","parent_comment_id":"0","creation_date":"Saturday, April 9, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"For the past events","content":"\nHi @Noemi,\u00a0\ndo you think we need to create Meetups post also for past events?\u00a0\n\u00a0\n\u00a0\n","comment_id":"22343","post_id":"6185","user_id":"2604","parent_comment_id":"0","creation_date":"Saturday, April 9, 2016 - 15:13","group_id":"5954"}},{"node":{"title":"For the past events","content":"\nHi @Noemi,\u00a0\ndo you think we need to create Meetups post also for past events?\u00a0\n\u00a0\n\u00a0\n","comment_id":"22343","post_id":"6185","user_id":"2604","parent_comment_id":"0","creation_date":"Saturday, April 9, 2016 - 15:13","group_id":"5954"}},{"node":{"title":"How to create events in the community space","content":"\nHi @Cristina Martellosio - because this is part of community outreach activities I recommend posting it in\u00a0Meetups\u00a0on the\u00a0community site.\nFor reference, maybe the Guide we set up will help\u00a0you in the use of the online environment\n","comment_id":"22342","post_id":"6185","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, April 9, 2016 - 13:55","group_id":"5954"}},{"node":{"title":"How to create events in the community space","content":"\nHi @Cristina Martellosio - because this is part of community outreach activities I recommend posting it in\u00a0Meetups\u00a0on the\u00a0community site.\nFor reference, maybe the Guide we set up will help\u00a0you in the use of the online environment\n","comment_id":"22342","post_id":"6185","user_id":"32","parent_comment_id":"0","creation_date":"Saturday, April 9, 2016 - 13:55","group_id":"5954"}},{"node":{"title":"Thanks for the suggestion","content":"\nAdded on the Op3nCare\u00a0homepage! I guess I was expecting this wiki\u00a0to reach more structure and consistency. If there are things we're missing or questions we should answer in it don't hesitate to add them.\n","comment_id":"22340","post_id":"6137","user_id":"32","parent_comment_id":"22334","creation_date":"Saturday, April 9, 2016 - 13:34","group_id":"5954"}},{"node":{"title":"Thanks for the suggestion","content":"\nAdded on the Op3nCare\u00a0homepage! I guess I was expecting this wiki\u00a0to reach more structure and consistency. If there are things we're missing or questions we should answer in it don't hesitate to add them.\n","comment_id":"22340","post_id":"6137","user_id":"32","parent_comment_id":"22334","creation_date":"Saturday, April 9, 2016 - 13:34","group_id":"5954"}},{"node":{"title":"Thanks for the suggestion","content":"\nAdded on the Op3nCare\u00a0homepage! I guess I was expecting this wiki\u00a0to reach more structure and consistency. If there are things we're missing or questions we should answer in it don't hesitate to add them.\n","comment_id":"22340","post_id":"6137","user_id":"32","parent_comment_id":"22334","creation_date":"Saturday, April 9, 2016 - 13:34","group_id":"5954"}},{"node":{"title":"I found it on the other OC page","content":"\nhttps:\/\/edgeryders.eu\/en\/op3ncare-community\/resources\nI have to admit I get them sort of mixed up. \u00a0But I can also see that if you go to the ER homepage, then click projects you can see the two choices. \u00a0But now I would say, given the importance of OC, why not put a discreet link to it righ there on the first page and avoid that extra clicking?\n","comment_id":"22334","post_id":"6137","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 20:11","group_id":"5954"}},{"node":{"title":"I found it on the other OC page","content":"\nhttps:\/\/edgeryders.eu\/en\/op3ncare-community\/resources\nI have to admit I get them sort of mixed up. \u00a0But I can also see that if you go to the ER homepage, then click projects you can see the two choices. \u00a0But now I would say, given the importance of OC, why not put a discreet link to it righ there on the first page and avoid that extra clicking?\n","comment_id":"22334","post_id":"6137","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 20:11","group_id":"5954"}},{"node":{"title":"I found it on the other OC page","content":"\nhttps:\/\/edgeryders.eu\/en\/op3ncare-community\/resources\nI have to admit I get them sort of mixed up. \u00a0But I can also see that if you go to the ER homepage, then click projects you can see the two choices. \u00a0But now I would say, given the importance of OC, why not put a discreet link to it righ there on the first page and avoid that extra clicking?\n","comment_id":"22334","post_id":"6137","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 20:11","group_id":"5954"}},{"node":{"title":"Make this wiki more prominent?","content":"\nGiven its improtance, shouldn't this wiki be linked around\u00a0the top of the\u00a0OpenCare Research page? \u00a0ALso, I would put a link to Nadia's recent presentation someplace prominent as well.\nAs Guy said about what reviewers want and don't want, it's also crucial to always remember how fresh eyes will see the site and what actions\u00a0they are likely to take once they get here.\n","comment_id":"22333","post_id":"6137","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 19:47","group_id":"5954"}},{"node":{"title":"Make this wiki more prominent?","content":"\nGiven its improtance, shouldn't this wiki be linked around\u00a0the top of the\u00a0OpenCare Research page? \u00a0ALso, I would put a link to Nadia's recent presentation someplace prominent as well.\nAs Guy said about what reviewers want and don't want, it's also crucial to always remember how fresh eyes will see the site and what actions\u00a0they are likely to take once they get here.\n","comment_id":"22333","post_id":"6137","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 19:47","group_id":"5954"}},{"node":{"title":"Make this wiki more prominent?","content":"\nGiven its improtance, shouldn't this wiki be linked around\u00a0the top of the\u00a0OpenCare Research page? \u00a0ALso, I would put a link to Nadia's recent presentation someplace prominent as well.\nAs Guy said about what reviewers want and don't want, it's also crucial to always remember how fresh eyes will see the site and what actions\u00a0they are likely to take once they get here.\n","comment_id":"22333","post_id":"6137","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 19:47","group_id":"5954"}},{"node":{"title":"Pictures of the workshop","content":"\nhttps:\/\/www.flickr.com\/photos\/wemake_cc\/albums\/72157666906850805\n@Cristina Martellosio\n@alessandro contini\n@Silvia_D'Ambrosio\n@zoescope\n@ChiaraFrr\n@Alberto\n@Nadia\n@Costantino\n@Moushira\n","comment_id":"22328","post_id":"6185","user_id":"8307","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 10:03","group_id":"5954"}},{"node":{"title":"Pictures of the workshop","content":"\nhttps:\/\/www.flickr.com\/photos\/wemake_cc\/albums\/72157666906850805\n@Cristina Martellosio\n@alessandro contini\n@Silvia_D'Ambrosio\n@zoescope\n@ChiaraFrr\n@Alberto\n@Nadia\n@Costantino\n@Moushira\n","comment_id":"22328","post_id":"6185","user_id":"8307","parent_comment_id":"0","creation_date":"Friday, April 8, 2016 - 10:03","group_id":"5954"}},{"node":{"title":"The grey areas","content":"\nThanks @Susa. Between caring and being careless there are many shades I think.. i for example can.t remember when was the last time\u00a0I\u00a0asked for \u00a0help. Or offered it when someone needed it badly. It.s a function of just what you say: isolation, feeling overwhelmed and especially embarassed. Subjecting oneself to embarrassment is not something today.s societies encourage.\n","comment_id":"22315","post_id":"6189","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 23:22","group_id":"0"}},{"node":{"title":"Timeless piece of writing","content":"\nThis is informing so many directions\u00a0in which Edgeryders have been looking and approaches that we've\u00a0supported\u00a0over the past years.\nPaging @Thom Stewart: what I mentioned to you and David Boland\u00a0the other day about deep thinking behind the idea of moving and working in a secluded place. With your own Pilgrim project in Galway perhaps you will be able to get to a deep narrative that makes it URGENT for it to happen.. because it would solve problems for whole collectivities.\u00a0\n","comment_id":"22312","post_id":"6171","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 22:04","group_id":"0"}},{"node":{"title":"Engagement dashboard","content":"\nThanks for updating the wiki with more relevant info. The dashboard\u00a0was meant to be\u00a0a nice page\/visualization with all the places people can engage with. At the moment this is probably all the community space - with its different pages. Scraping the formulation from the wiki then.\u00a0\n","comment_id":"22299","post_id":"6137","user_id":"32","parent_comment_id":"22297","creation_date":"Thursday, April 7, 2016 - 13:16","group_id":"5954"}},{"node":{"title":"Engagement dashboard","content":"\nThanks for updating the wiki with more relevant info. The dashboard\u00a0was meant to be\u00a0a nice page\/visualization with all the places people can engage with. At the moment this is probably all the community space - with its different pages. Scraping the formulation from the wiki then.\u00a0\n","comment_id":"22299","post_id":"6137","user_id":"32","parent_comment_id":"22297","creation_date":"Thursday, April 7, 2016 - 13:16","group_id":"5954"}},{"node":{"title":"Engagement dashboard","content":"\nThanks for updating the wiki with more relevant info. The dashboard\u00a0was meant to be\u00a0a nice page\/visualization with all the places people can engage with. At the moment this is probably all the community space - with its different pages. Scraping the formulation from the wiki then.\u00a0\n","comment_id":"22299","post_id":"6137","user_id":"32","parent_comment_id":"22297","creation_date":"Thursday, April 7, 2016 - 13:16","group_id":"5954"}},{"node":{"title":"Questions on the wiki","content":"\nI have done a first editing pass. I have some question.\nThe most important: we are now live, but our consent funnel is not ready. ScImpulse has designed it, but not yet deployed. Is this OK? @markomanka, what do you say as the person in charge of ethics?\nGeneral question: it seems the wiki is written with the OpenCare team in mind, but in the beginning it says\u00a0\nThe purpose of this document is to help OpenCare project team and members joining edgeryders.eu [...]\nLess important: what do we mean by\u00a0ENGAGEMENT TOOLS WE ARE USING - DASHBOARD? There is no dashboard other than this, but that has got nothing to do with social media, meetups etc. I propose to eliminate that.\u00a0\n@Noemi I think you are the author....\n","comment_id":"22297","post_id":"6137","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 10:54","group_id":"5954"}},{"node":{"title":"Questions on the wiki","content":"\nI have done a first editing pass. I have some question.\nThe most important: we are now live, but our consent funnel is not ready. ScImpulse has designed it, but not yet deployed. Is this OK? @markomanka, what do you say as the person in charge of ethics?\nGeneral question: it seems the wiki is written with the OpenCare team in mind, but in the beginning it says\u00a0\nThe purpose of this document is to help OpenCare project team and members joining edgeryders.eu [...]\nLess important: what do we mean by\u00a0ENGAGEMENT TOOLS WE ARE USING - DASHBOARD? There is no dashboard other than this, but that has got nothing to do with social media, meetups etc. I propose to eliminate that.\u00a0\n@Noemi I think you are the author....\n","comment_id":"22297","post_id":"6137","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 10:54","group_id":"5954"}},{"node":{"title":"Questions on the wiki","content":"\nI have done a first editing pass. I have some question.\nThe most important: we are now live, but our consent funnel is not ready. ScImpulse has designed it, but not yet deployed. Is this OK? @markomanka, what do you say as the person in charge of ethics?\nGeneral question: it seems the wiki is written with the OpenCare team in mind, but in the beginning it says\u00a0\nThe purpose of this document is to help OpenCare project team and members joining edgeryders.eu [...]\nLess important: what do we mean by\u00a0ENGAGEMENT TOOLS WE ARE USING - DASHBOARD? There is no dashboard other than this, but that has got nothing to do with social media, meetups etc. I propose to eliminate that.\u00a0\n@Noemi I think you are the author....\n","comment_id":"22297","post_id":"6137","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 10:54","group_id":"5954"}},{"node":{"title":"Agree","content":"\nOk, settled then:\n\nWe improve the wiki.\nWe point the Commission to the wiki\nWe spread its content. We normally spread content in the form of links: in practice, it means that you share (by email, or Twitter, or whatever) a short message that says \"We have made XYZ, it's really interesting. Check it out here: [link].\" If the [link] points to our own online space, even better: people who are intrigued can very easily find out more, and even start participating.\n\n@Noemi and @Nadia; agreed?\n","comment_id":"22296","post_id":"6137","user_id":"34","parent_comment_id":"22295","creation_date":"Thursday, April 7, 2016 - 10:02","group_id":"5954"}},{"node":{"title":"Agree","content":"\nOk, settled then:\n\nWe improve the wiki.\nWe point the Commission to the wiki\nWe spread its content. We normally spread content in the form of links: in practice, it means that you share (by email, or Twitter, or whatever) a short message that says \"We have made XYZ, it's really interesting. Check it out here: [link].\" If the [link] points to our own online space, even better: people who are intrigued can very easily find out more, and even start participating.\n\n@Noemi and @Nadia; agreed?\n","comment_id":"22296","post_id":"6137","user_id":"34","parent_comment_id":"22295","creation_date":"Thursday, April 7, 2016 - 10:02","group_id":"5954"}},{"node":{"title":"Agree","content":"\nOk, settled then:\n\nWe improve the wiki.\nWe point the Commission to the wiki\nWe spread its content. We normally spread content in the form of links: in practice, it means that you share (by email, or Twitter, or whatever) a short message that says \"We have made XYZ, it's really interesting. Check it out here: [link].\" If the [link] points to our own online space, even better: people who are intrigued can very easily find out more, and even start participating.\n\n@Noemi and @Nadia; agreed?\n","comment_id":"22296","post_id":"6137","user_id":"34","parent_comment_id":"22295","creation_date":"Thursday, April 7, 2016 - 10:02","group_id":"5954"}},{"node":{"title":"One important aspect","content":"\nGuy, I agree with you, we have to put ourselves in the reviewers' shoes when we have to submit information on the project to the Commission.\u00a0\nAlberto, if you wish to\u00a0use the content of this wiki, this is fine with me,\u00a0but my point is the following: this mini-presentation \u00a0is also a mean now to come clear to the Commission but also to the public\u00a0about the scientific interest of putting up this platform.\nWhen I mean public, I do think of the people already following the project, who may find the wiki just fine, but I also think that each partner could\u00a0further use this documentation to bring people here together, using our own networks.\n\u00a0\n","comment_id":"22295","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 09:52","group_id":"5954"}},{"node":{"title":"One important aspect","content":"\nGuy, I agree with you, we have to put ourselves in the reviewers' shoes when we have to submit information on the project to the Commission.\u00a0\nAlberto, if you wish to\u00a0use the content of this wiki, this is fine with me,\u00a0but my point is the following: this mini-presentation \u00a0is also a mean now to come clear to the Commission but also to the public\u00a0about the scientific interest of putting up this platform.\nWhen I mean public, I do think of the people already following the project, who may find the wiki just fine, but I also think that each partner could\u00a0further use this documentation to bring people here together, using our own networks.\n\u00a0\n","comment_id":"22295","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 09:52","group_id":"5954"}},{"node":{"title":"One important aspect","content":"\nGuy, I agree with you, we have to put ourselves in the reviewers' shoes when we have to submit information on the project to the Commission.\u00a0\nAlberto, if you wish to\u00a0use the content of this wiki, this is fine with me,\u00a0but my point is the following: this mini-presentation \u00a0is also a mean now to come clear to the Commission but also to the public\u00a0about the scientific interest of putting up this platform.\nWhen I mean public, I do think of the people already following the project, who may find the wiki just fine, but I also think that each partner could\u00a0further use this documentation to bring people here together, using our own networks.\n\u00a0\n","comment_id":"22295","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 09:52","group_id":"5954"}},{"node":{"title":"Whoa","content":"\nWell, your friend certainly got me wrongfooted. He thinks we should all keep separate to keep cultures pure, yet there he is, a catholic Slav in an Anglo-Celtic\u00a0protestant country. He does not like the idea of blonde girls sleeping with black guys, but I am sure he, like most men of any shade, enjoys the sight of a pretty black woman. Very hard to argue on these basis.\u00a0\nWe can only hope that the people bringing back the good stories will be more credible and cooler than those bringing back the bad ones. This way, we can win over more of the new generation \u2013 aim at cultural hegemony, in other words.\u00a0\nPeople who believe in cultural purityafter the age of 18? I am afraid they are a lost cause. I do not recommend investing time in trying to change their mind. That's their loss: they are going to miss the music and the food and the laughter and the glorious diversity in Vuka!\u00a0\n","comment_id":"22294","post_id":"6192","user_id":"34","parent_comment_id":"22291","creation_date":"Thursday, April 7, 2016 - 09:50","group_id":"0"}},{"node":{"title":"Well then --","content":"\n-- we are on the same wavelength (sounds French, \"sur la m\u00eame longueur d'ondes\"). I shouldn't be surprised after all :-) A two-pager\u00a0wiki works fine. @LuceChiodelliUB maybe can build a short printed (pdf) document describing the resources (what's in there, and\u00a0how\/where to find them)\u00a0to be uploaded through EMDesk.\nAnyway the point\u00a0I make remains relevant for all subsequent deliverables. Adopting a reviewer-compatible standpoint makes reviewing material more efficient.\n","comment_id":"22293","post_id":"6137","user_id":"6399","parent_comment_id":"22292","creation_date":"Thursday, April 7, 2016 - 09:41","group_id":"5954"}},{"node":{"title":"Well then --","content":"\n-- we are on the same wavelength (sounds French, \"sur la m\u00eame longueur d'ondes\"). I shouldn't be surprised after all :-) A two-pager\u00a0wiki works fine. @LuceChiodelliUB maybe can build a short printed (pdf) document describing the resources (what's in there, and\u00a0how\/where to find them)\u00a0to be uploaded through EMDesk.\nAnyway the point\u00a0I make remains relevant for all subsequent deliverables. Adopting a reviewer-compatible standpoint makes reviewing material more efficient.\n","comment_id":"22293","post_id":"6137","user_id":"6399","parent_comment_id":"22292","creation_date":"Thursday, April 7, 2016 - 09:41","group_id":"5954"}},{"node":{"title":"Well then --","content":"\n-- we are on the same wavelength (sounds French, \"sur la m\u00eame longueur d'ondes\"). I shouldn't be surprised after all :-) A two-pager\u00a0wiki works fine. @LuceChiodelliUB maybe can build a short printed (pdf) document describing the resources (what's in there, and\u00a0how\/where to find them)\u00a0to be uploaded through EMDesk.\nAnyway the point\u00a0I make remains relevant for all subsequent deliverables. Adopting a reviewer-compatible standpoint makes reviewing material more efficient.\n","comment_id":"22293","post_id":"6137","user_id":"6399","parent_comment_id":"22292","creation_date":"Thursday, April 7, 2016 - 09:41","group_id":"5954"}},{"node":{"title":"We have that","content":"\nYou misunderstand me, Guy. I propose to point [reviewers, the Commission] not to the platform itself, but to this wiki. Which is a 1200 words document that describes the processes \u2013 exactly your two pager. But with one advantage: we need it anyway, so it is in our best interest to\u00a0write it clearly. This gets us rid of the hollow feeling of writing a deliverable that no one cares about, just another box ticked, that I have sometimes felt when doing funded research.\u00a0\nMakes sense now?\n","comment_id":"22292","post_id":"6137","user_id":"34","parent_comment_id":"22289","creation_date":"Thursday, April 7, 2016 - 09:29","group_id":"5954"}},{"node":{"title":"We have that","content":"\nYou misunderstand me, Guy. I propose to point [reviewers, the Commission] not to the platform itself, but to this wiki. Which is a 1200 words document that describes the processes \u2013 exactly your two pager. But with one advantage: we need it anyway, so it is in our best interest to\u00a0write it clearly. This gets us rid of the hollow feeling of writing a deliverable that no one cares about, just another box ticked, that I have sometimes felt when doing funded research.\u00a0\nMakes sense now?\n","comment_id":"22292","post_id":"6137","user_id":"34","parent_comment_id":"22289","creation_date":"Thursday, April 7, 2016 - 09:29","group_id":"5954"}},{"node":{"title":"We have that","content":"\nYou misunderstand me, Guy. I propose to point [reviewers, the Commission] not to the platform itself, but to this wiki. Which is a 1200 words document that describes the processes \u2013 exactly your two pager. But with one advantage: we need it anyway, so it is in our best interest to\u00a0write it clearly. This gets us rid of the hollow feeling of writing a deliverable that no one cares about, just another box ticked, that I have sometimes felt when doing funded research.\u00a0\nMakes sense now?\n","comment_id":"22292","post_id":"6137","user_id":"34","parent_comment_id":"22289","creation_date":"Thursday, April 7, 2016 - 09:29","group_id":"5954"}},{"node":{"title":"It gets even worse when I","content":"\nIt gets even worse when I talk to my friends who migrated from Poland and who, living surrounded by people from Arabic countries, India, Pakistan, radicalise even more. One of my friends, after 3 years of living and working in the UK, says that indeed, these people are sometimes good, but the best thing for all of us is to stay away from each other and keep our pure cultures and races. And that it worries him blond girls decide to sleep with black guys. I know I come from an extreme country, where 96% of the people are Poles, and we're all white and catholic - and now imagine even with this huge wave of migration, only some of these people will bring back some good stories of the others. It really makes me wonder that if the stories do not help, if own experiences do not help (wait, I even have a friend living in Brussels who didn't join us on the LOTE evening because it was in Molleenbeck), then how do we make people trust each other and grow a positive, open, supportive, inclusive society?\u00a0\nIt is also a challenge to create this environment for meetings that would not feel like encountering something exotic and different due to some voyerist instincts - I used to work in italy for an NGO and we organised human libraries there, but even though it is some sort of step for people to have a chat with migrants from Ghana and Bangladesh, to meet transvestites and gay community members, it felt a little bit like a show. These people run into each other on the streets, you see them every day - why so many of us decide not to interact, discover and understand them? It's a puzzle.\u00a0\n","comment_id":"22291","post_id":"6192","user_id":"678","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 08:40","group_id":"0"}},{"node":{"title":"Love it!","content":"\nSome case studies showcasing the benefits of shared living.\n","comment_id":"22290","post_id":"6170","user_id":"6028","parent_comment_id":"0","creation_date":"Thursday, April 7, 2016 - 07:50","group_id":"0"}},{"node":{"title":"See things as a reviewer","content":"\nHere is my view of things, and I am sure this is what Luce has in mind when asking any of us to provide reviewing material. @Alberto @Nadia @LuceChiodelliUB\nThe idea is to go as smoothly as possible with the reviewing process. The platform and its content -- as suggested by Alberto -- of course tells the story by itself, it's all there ! And it is a living thing, you see the organism in full if you take time to look at it in action.\nBut, but,\u00a0*reviewers* (and I ask you to believe me, I've played that role quite a few times).\u00a0You have to put yourself in the skin of a reviewer when deciding what\/how\/why to deliver. Think of this person, reading about OpenCare a week before the review (sometimes more, but reading ahead of time doesn't mean\u00a0giving more time reviewing the project). Think of this person who wants to get information in a synthesized way, yet who wants to get a \"feeling\" about what's going on.\nSo, my take is, it's worth to put up a short, crisp, one or two pager that gives an overview of the deliverable. That tells this person where to go on the portal and what is to find there. You guys are professionnals at communicating ideas with so much enthusiasm. I am sure you all know what I am talking about.\nI know time flies like an arrow. Reviewers don't like to dig for information, they don't like it when they need to summarize things themselves. Plus, when letting them do the work there is a risk that they don't focus on the right thing -- because yes, they come with their own set of glasses, with their domain of expertise that do not necessarily fit ours a 100% percent ... and well, OpenCare is quite a unique \"assemblage\" of people, isn't it?\n","comment_id":"22289","post_id":"6137","user_id":"6399","parent_comment_id":"22279","creation_date":"Thursday, April 7, 2016 - 07:03","group_id":"5954"}},{"node":{"title":"See things as a reviewer","content":"\nHere is my view of things, and I am sure this is what Luce has in mind when asking any of us to provide reviewing material. @Alberto @Nadia @LuceChiodelliUB\nThe idea is to go as smoothly as possible with the reviewing process. The platform and its content -- as suggested by Alberto -- of course tells the story by itself, it's all there ! And it is a living thing, you see the organism in full if you take time to look at it in action.\nBut, but,\u00a0*reviewers* (and I ask you to believe me, I've played that role quite a few times).\u00a0You have to put yourself in the skin of a reviewer when deciding what\/how\/why to deliver. Think of this person, reading about OpenCare a week before the review (sometimes more, but reading ahead of time doesn't mean\u00a0giving more time reviewing the project). Think of this person who wants to get information in a synthesized way, yet who wants to get a \"feeling\" about what's going on.\nSo, my take is, it's worth to put up a short, crisp, one or two pager that gives an overview of the deliverable. That tells this person where to go on the portal and what is to find there. You guys are professionnals at communicating ideas with so much enthusiasm. I am sure you all know what I am talking about.\nI know time flies like an arrow. Reviewers don't like to dig for information, they don't like it when they need to summarize things themselves. Plus, when letting them do the work there is a risk that they don't focus on the right thing -- because yes, they come with their own set of glasses, with their domain of expertise that do not necessarily fit ours a 100% percent ... and well, OpenCare is quite a unique \"assemblage\" of people, isn't it?\n","comment_id":"22289","post_id":"6137","user_id":"6399","parent_comment_id":"22279","creation_date":"Thursday, April 7, 2016 - 07:03","group_id":"5954"}},{"node":{"title":"See things as a reviewer","content":"\nHere is my view of things, and I am sure this is what Luce has in mind when asking any of us to provide reviewing material. @Alberto @Nadia @LuceChiodelliUB\nThe idea is to go as smoothly as possible with the reviewing process. The platform and its content -- as suggested by Alberto -- of course tells the story by itself, it's all there ! And it is a living thing, you see the organism in full if you take time to look at it in action.\nBut, but,\u00a0*reviewers* (and I ask you to believe me, I've played that role quite a few times).\u00a0You have to put yourself in the skin of a reviewer when deciding what\/how\/why to deliver. Think of this person, reading about OpenCare a week before the review (sometimes more, but reading ahead of time doesn't mean\u00a0giving more time reviewing the project). Think of this person who wants to get information in a synthesized way, yet who wants to get a \"feeling\" about what's going on.\nSo, my take is, it's worth to put up a short, crisp, one or two pager that gives an overview of the deliverable. That tells this person where to go on the portal and what is to find there. You guys are professionnals at communicating ideas with so much enthusiasm. I am sure you all know what I am talking about.\nI know time flies like an arrow. Reviewers don't like to dig for information, they don't like it when they need to summarize things themselves. Plus, when letting them do the work there is a risk that they don't focus on the right thing -- because yes, they come with their own set of glasses, with their domain of expertise that do not necessarily fit ours a 100% percent ... and well, OpenCare is quite a unique \"assemblage\" of people, isn't it?\n","comment_id":"22289","post_id":"6137","user_id":"6399","parent_comment_id":"22279","creation_date":"Thursday, April 7, 2016 - 07:03","group_id":"5954"}},{"node":{"title":"We can make one! ","content":"\nIt was great fun. But, hey \u2013 we know so many global people now! We can just make more parties like it. In fact, I have half a mind to throwing one in our place this summer... I am sure you can find a DJ in Calais,\u00a0@Alex_Levene .\nI also still like the title: Vuka! (apparently it means \"arise\" in Zulu \u2013 or so our South African friend Dan maintained). It's a cool word.\n","comment_id":"22288","post_id":"6192","user_id":"34","parent_comment_id":"22286","creation_date":"Thursday, April 7, 2016 - 00:30","group_id":"0"}},{"node":{"title":"I wish i could have come to","content":"\nI wish i could have come to that party! It's sounds like so much fun\n","comment_id":"22286","post_id":"6192","user_id":"6559","parent_comment_id":"22283","creation_date":"Wednesday, April 6, 2016 - 23:53","group_id":"0"}},{"node":{"title":"It goes back to communities","content":"\nGreat post :-)\nIt seems to me that the experiences you describe are all community-based. It's always people, it's always peer-to-peer. People give each other acceptance,\u00a0encouragement, sense of direction. This a lot more resilient than being socially validated by how much money you make \u2013 if only because the people in\u00a0these experiences have\u00a0two\u00a0ways to get acceptance and validation, one through material achievement and one through the community.\u00a0\nSo, probably, this is the best path to making all this become \"somethings serious\": invest on developing as many ways as possible for people to regenerate meaning and validation for each other.\u00a0\n","comment_id":"22285","post_id":"6171","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 23:48","group_id":"0"}},{"node":{"title":"Not in this case","content":"\nDirect income support is not part of the package in our group \u2013 at least not at this stage. We do help each other financially, but this is mostly\u00a0a consequence of the economies of scale that exist in family life. The other part is a willingness to cut each other slack; this all started with us accepting to sub-rent to recent migrants, who did not have jobs yet. We trusted them to make it happen, and they did. Later, when we grew from four to six, same thing again: one of the two new people did not have a job, but we took them in all the same.\u00a0\nBut in the long run, the deal is that you have to pull your weight. Maybe\u00a0in the future we will have become so attached that we will change the deal. Who knows? Certainly this setup gives us a couple of shots before we have to give up completely. For example, we could sub-rent the extra room, and take the additional income from everyone's rent. Maybe the reduced privacy would be a sacrifice worth making to keep each other close, already now. Depends who you ask, I guess :-)\n\u00a0\n","comment_id":"22284","post_id":"6170","user_id":"34","parent_comment_id":"22167","creation_date":"Wednesday, April 6, 2016 - 23:22","group_id":"0"}},{"node":{"title":"\"How can they happen without being forced?\"","content":"\nThis, for me, is a really difficult design challenge.\nYears ago, I was living in Milan.\u00a0I got frustrated because, though people from every corner of the world lived in the city side by side with me, almost all of my friends were white Italians like myself. WTF?\nWith a small group of global friends, we responded by throwing a party. The idea was:\n\ndance to world music, not just Euro Techno or Detroit House or whatever was in vogue in 2011;\nstress the \"everyone welcome\" theme\nthe core group of\u00a0non-italians, globalised Italians and second-generation Italians\u00a0would advertise their presence. This was to let people know that (1) no matter where they came from, they would not be the only foreign-looking people in the room, and (2) no, this was not a party of the Eritrean community, or the Peruvian community; it was a party of the Milanese community, just some Milanese happened to be of Eritrean or Peruvian background.\u00a0\n\nI mentioned it in my blog:\nAnd so, with a small group of Milanese from all over the world we decided to organize a party to celebrate the diversity of our country and our city. We called it Vuka, which means \u201cArise!\u201d or \u201cAwaken!\u201d in the Zulu language; and we are going to throw it tomorrow, Tuesday March 22nd at 10 p.m. sharp, at Casa del Pane di Corso di Porta Venezia 63 (map). We designed it as a club night for dancing to the sound of the most cutting-edge clubs of Lagos, Karachi and Barletta [a small town in the south of Italy]; and where the Milanese of any origin are welcome and respected. Join Medhin (Milano\u2013Asmara), Nadia (Stockholm), Dan (Johannesburg), Davide (Verona-Sydney-Osaka) and myself to dance away to the world\u2019s beat in a space where everyone\u2019s welcome, and our many differences of living out Milano power up the party.\nIt worked pretty well! But then, we left the country and could not continue with the experience\u00a0\u00a0:-)\n","comment_id":"22283","post_id":"6192","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 23:10","group_id":"0"}},{"node":{"title":"DIYing the family?","content":"\nHello @M\u00f8rbeck, good to meet you.\u00a0\nI am not sure I understand you completely, but you seem to be saying something like: what you call the natural family is the default locus of care. But some people do not have access to that. They have to make their own, so that they can reproduce that locus.\nThe traditional way to do this was this: you would leave your parents' house, marry,\u00a0settle down with your spouse and have children. This produced a \"one size fits all\" world, with\u00a0most families were very similar to each other in composition. You seem to be saying that now this is untenable, and families should be (and in part are)\u00a0allowed to be more diverse, like a Lego construction made of different-looking pieces. A DIY sort of family, heavily customized.\u00a0Is this broadly correct?\nBecause if so, you might be interested in my own quasi-familial thing in Brussels. I love my original family very much, but none of them live in the same country as I do!\u00a0\nhttps:\/\/edgeryders.eu\/en\/living-social-in-brussels-co-living-as-a-lifestyle-for-grown-ups\n","comment_id":"22282","post_id":"6207","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 22:54","group_id":"0"}},{"node":{"title":":)","content":"\nNice meeting you \"virtually\" as well, @Noemi.\u00a0 See you in the next call :)\n","comment_id":"22281","post_id":"6206","user_id":"8373","parent_comment_id":"22278","creation_date":"Wednesday, April 6, 2016 - 22:50","group_id":"5954"}},{"node":{"title":":)","content":"\nNice meeting you \"virtually\" as well, @Noemi.\u00a0 See you in the next call :)\n","comment_id":"22281","post_id":"6206","user_id":"8373","parent_comment_id":"22278","creation_date":"Wednesday, April 6, 2016 - 22:50","group_id":"5954"}},{"node":{"title":"Welcome, too","content":"\n:-)\n@Noemi, @Nadia, should we assign this post to the community space group as well?\u00a0\n","comment_id":"22280","post_id":"6206","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 22:41","group_id":"5954"}},{"node":{"title":"Welcome, too","content":"\n:-)\n@Noemi, @Nadia, should we assign this post to the community space group as well?\u00a0\n","comment_id":"22280","post_id":"6206","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 22:41","group_id":"5954"}},{"node":{"title":"Not sure \u2013 but here's an idea","content":"\nThe deliverable is the platform itself, not a report about the platform.\u00a0\nHere's a suggestion: this very wiki could serve as the documentation to that\u00a0deliverable. We clearly need it, so time spent on it is not wasted;\u00a0and it tells users and the team how to navigate the OC community space. So maybe stick a Horizon 2020 logo into it; add a couple of screenshots (Nadia's slides, I guess), and send the EC, I don't know, a good-looking\u00a0PDF file containing the link to the wiki?\u00a0\n@LuceChiodelliUB, does this work?\n","comment_id":"22279","post_id":"6137","user_id":"34","parent_comment_id":"22266","creation_date":"Wednesday, April 6, 2016 - 22:39","group_id":"5954"}},{"node":{"title":"Not sure \u2013 but here's an idea","content":"\nThe deliverable is the platform itself, not a report about the platform.\u00a0\nHere's a suggestion: this very wiki could serve as the documentation to that\u00a0deliverable. We clearly need it, so time spent on it is not wasted;\u00a0and it tells users and the team how to navigate the OC community space. So maybe stick a Horizon 2020 logo into it; add a couple of screenshots (Nadia's slides, I guess), and send the EC, I don't know, a good-looking\u00a0PDF file containing the link to the wiki?\u00a0\n@LuceChiodelliUB, does this work?\n","comment_id":"22279","post_id":"6137","user_id":"34","parent_comment_id":"22266","creation_date":"Wednesday, April 6, 2016 - 22:39","group_id":"5954"}},{"node":{"title":"Not sure \u2013 but here's an idea","content":"\nThe deliverable is the platform itself, not a report about the platform.\u00a0\nHere's a suggestion: this very wiki could serve as the documentation to that\u00a0deliverable. We clearly need it, so time spent on it is not wasted;\u00a0and it tells users and the team how to navigate the OC community space. So maybe stick a Horizon 2020 logo into it; add a couple of screenshots (Nadia's slides, I guess), and send the EC, I don't know, a good-looking\u00a0PDF file containing the link to the wiki?\u00a0\n@LuceChiodelliUB, does this work?\n","comment_id":"22279","post_id":"6137","user_id":"34","parent_comment_id":"22266","creation_date":"Wednesday, April 6, 2016 - 22:39","group_id":"5954"}},{"node":{"title":"Join our weekly call?","content":"\nHi @Moushira, lovely to meet you virtually. I'm noemi, doing part of the community mmanagement online in open care. I'm saying part because I see you are also attached to somehow being close to our growing community, like many of us involved.\u00a0\nHope to see you on Monday at our regular online hangouts 16:30 cet?\u00a0https:\/\/edgeryders.eu\/en\/op3ncare\/op3n-meetups\n","comment_id":"22278","post_id":"6206","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 22:10","group_id":"5954"}},{"node":{"title":"Join our weekly call?","content":"\nHi @Moushira, lovely to meet you virtually. I'm noemi, doing part of the community mmanagement online in open care. I'm saying part because I see you are also attached to somehow being close to our growing community, like many of us involved.\u00a0\nHope to see you on Monday at our regular online hangouts 16:30 cet?\u00a0https:\/\/edgeryders.eu\/en\/op3ncare\/op3n-meetups\n","comment_id":"22278","post_id":"6206","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 22:10","group_id":"5954"}},{"node":{"title":"Welcome","content":"\nThanks for introducing yourself. I look forward to hearing more about your project and seeing what WeMake!\nAlex\n","comment_id":"22277","post_id":"6206","user_id":"6559","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 21:52","group_id":"5954"}},{"node":{"title":"Welcome","content":"\nThanks for introducing yourself. I look forward to hearing more about your project and seeing what WeMake!\nAlex\n","comment_id":"22277","post_id":"6206","user_id":"6559","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 21:52","group_id":"5954"}},{"node":{"title":"Thanks!","content":"\nLets see how we can grow a happy OpenCare community :)\n","comment_id":"22276","post_id":"6206","user_id":"8373","parent_comment_id":"22272","creation_date":"Wednesday, April 6, 2016 - 20:03","group_id":"5954"}},{"node":{"title":"Thanks!","content":"\nLets see how we can grow a happy OpenCare community :)\n","comment_id":"22276","post_id":"6206","user_id":"8373","parent_comment_id":"22272","creation_date":"Wednesday, April 6, 2016 - 20:03","group_id":"5954"}},{"node":{"title":"Welcome :)","content":"\nHi Moushira,\u00a0\nWelcome to the team ! Hope we'll get to know you\u00a0soon\u00a0:)\nLuce\n","comment_id":"22272","post_id":"6206","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 17:06","group_id":"5954"}},{"node":{"title":"Welcome :)","content":"\nHi Moushira,\u00a0\nWelcome to the team ! Hope we'll get to know you\u00a0soon\u00a0:)\nLuce\n","comment_id":"22272","post_id":"6206","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 17:06","group_id":"5954"}},{"node":{"title":"Looking forward to read more.","content":"\nThanks for your thoughts @Tomma and for keeping the rest of us not in Berlin up to date.\nMy name is Noemi, and myself learning to live daily with a smiling face. Not very easy, but I enjoy being in my home environment - and the feeling of safety which it gives. Here is my story, looking forward to read you. By the way you can Edit your post anytime should you want to add more info about yourself. Cheers!\n","comment_id":"22270","post_id":"6190","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 16:31","group_id":"0"}},{"node":{"title":"What do you currently do?","content":"\nHi @Cindy, how is Berlin treating you, did you find inspiration in ways in which the community welcomed you?\u00a0Back in the days Berlin used to be one of the most interesting, rich-in-diversity\u00a0spaces to be in. Actually even now Edgeryders has a strong community base there, if you're interested to meet up let me know. I bet you met Susa and Nadia already, so that should give you a hint.\nI look forward to visiting again, art festivals there are a favourite of mine.\n","comment_id":"22267","post_id":"6200","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 16:14","group_id":"0"}},{"node":{"title":"Necessary?","content":"\n@Alberto is this really necessary?\n","comment_id":"22266","post_id":"6137","user_id":"45","parent_comment_id":"22264","creation_date":"Wednesday, April 6, 2016 - 15:52","group_id":"5954"}},{"node":{"title":"Necessary?","content":"\n@Alberto is this really necessary?\n","comment_id":"22266","post_id":"6137","user_id":"45","parent_comment_id":"22264","creation_date":"Wednesday, April 6, 2016 - 15:52","group_id":"5954"}},{"node":{"title":"Necessary?","content":"\n@Alberto is this really necessary?\n","comment_id":"22266","post_id":"6137","user_id":"45","parent_comment_id":"22264","creation_date":"Wednesday, April 6, 2016 - 15:52","group_id":"5954"}},{"node":{"title":"yes busy. ","content":"\nsorry. Back at end of week.\n","comment_id":"22264","post_id":"6137","user_id":"45","parent_comment_id":"22263","creation_date":"Wednesday, April 6, 2016 - 15:48","group_id":"5954"}},{"node":{"title":"yes busy. ","content":"\nsorry. Back at end of week.\n","comment_id":"22264","post_id":"6137","user_id":"45","parent_comment_id":"22263","creation_date":"Wednesday, April 6, 2016 - 15:48","group_id":"5954"}},{"node":{"title":"yes busy. ","content":"\nsorry. Back at end of week.\n","comment_id":"22264","post_id":"6137","user_id":"45","parent_comment_id":"22263","creation_date":"Wednesday, April 6, 2016 - 15:48","group_id":"5954"}},{"node":{"title":"Any news ?","content":"\nHi Nadia,\u00a0\nAny news concerning the platform presentation ?\nI know you've been busy those days - if you need more time, just let me know :)\n","comment_id":"22263","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 14:18","group_id":"5954"}},{"node":{"title":"Any news ?","content":"\nHi Nadia,\u00a0\nAny news concerning the platform presentation ?\nI know you've been busy those days - if you need more time, just let me know :)\n","comment_id":"22263","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 14:18","group_id":"5954"}},{"node":{"title":"Any news ?","content":"\nHi Nadia,\u00a0\nAny news concerning the platform presentation ?\nI know you've been busy those days - if you need more time, just let me know :)\n","comment_id":"22263","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 14:18","group_id":"5954"}},{"node":{"title":"Panama Papers","content":"\nIn\u00a0Azerbaijan\u00a0and\u00a0Armenia\n","comment_id":"22258","post_id":"6199","user_id":"6028","parent_comment_id":"0","creation_date":"Wednesday, April 6, 2016 - 10:45","group_id":"0"}},{"node":{"title":"Thank you @Alex Levene!","content":"\nThank you @Alex Levene! Though it's temporary ceasefire, Azeris still shoot but not as much as before, now we need to wait and see...apparently there are 2 solutions out of this: full blown war or back to frozen conflict. The thing is Armenians are united against a common enemy and ready to protect their land while for Azeris this is a matter of principle - after all NKR has been a part of Azerbaijan during USSR, so they can't accept to lose it. Apparently no way to solve this conflict in a diplomatic way...maybe in a 100 years, when the rulers change and the new open-minded generation comes to power.\n","comment_id":"22244","post_id":"6199","user_id":"6028","parent_comment_id":"22239","creation_date":"Tuesday, April 5, 2016 - 21:59","group_id":"0"}},{"node":{"title":"Anyone to contact for sharing a story?","content":"\nHi @Cristina Martellosio, looking at the Challenges active now in Open Care to discover inspiring stories I wonder if there are people\/\u00a0cases that you learned about\u00a0during the Milan events (this one and others)? Maybe someone who was especially interested in joining Open Care\u00a0could be invited here or interviewed? If it's in Italian rather than English, it's also fine.\nI'm thinking it would be helpful to get a sense of how people you engage are responding and what we can\u00a0offer as a community.\n","comment_id":"22241","post_id":"6112","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, April 5, 2016 - 20:22","group_id":"5954"}},{"node":{"title":"Anyone to contact for sharing a story?","content":"\nHi @Cristina Martellosio, looking at the Challenges active now in Open Care to discover inspiring stories I wonder if there are people\/\u00a0cases that you learned about\u00a0during the Milan events (this one and others)? Maybe someone who was especially interested in joining Open Care\u00a0could be invited here or interviewed? If it's in Italian rather than English, it's also fine.\nI'm thinking it would be helpful to get a sense of how people you engage are responding and what we can\u00a0offer as a community.\n","comment_id":"22241","post_id":"6112","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, April 5, 2016 - 20:22","group_id":"5954"}},{"node":{"title":"Heartbreaking","content":"\nThis is awful news given all the psoitive information you were sharing with us at LOTE5. I'm upset (but not surprised) that this issue is receiving absolutely no attention in UK.\nI will do what i can to share stories\nAlex\n","comment_id":"22239","post_id":"6199","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, April 5, 2016 - 19:59","group_id":"0"}},{"node":{"title":"Failure can be a path to activism, nicely said.","content":"\nNice to meet you @JanStassen!\nI don't speak German so I used google translate to understand your post\u00a0(English translation here). If I got it well, you have said wise words: we don't need to reach the care utopia with normalized approaches, but with trial and error. Are simulator workshops something to look into with more detail then? Any other tells or resources you know, do tell.\u00a0that would be useful to OpenCare where we are supposed to look into promising ideas and prototype them - but prototyping in the \"lab\" so to speak could mean a due dilligence fail test (?) hm.\n\u00a0\n","comment_id":"22229","post_id":"6187","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, April 5, 2016 - 13:21","group_id":"0"}},{"node":{"title":"Questions for all indeed!","content":"\nHi @Luisa, nice to meet you and welcome on board of Edgeryders. I'm Noemi, and like you I was disappointed at the lack of empathy people around manifest when it comes to displaced populations.\nEnd of February in Brussels many of us edgeryders had a community event to look at what is out there and how people like us can be part of a constructive\u00a0mobilization. We had a powerful case study from Armenia where @Iriedawta shared mind bogging numbers and wasteful efforts in her country to deal with this, but we also met people like the group at Dine With Us in Brussels who are one step ahead of the game. That, for me, is an illustrative answer to your question \"can we trigger it at home?\"\nFor me, the test is winning arguments with family and close friends whose opinions are a little far off from mine.\u00a0What is your practical experience?\u00a0\n","comment_id":"22214","post_id":"6192","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, April 5, 2016 - 09:39","group_id":"0"}},{"node":{"title":"Interessante Dialoge zwischen","content":"\nInteressante Dialoge zwischen Produktdesign- und GWK-Studenten ausgehend von den Themen\u00a0\"People in Move\" und \"Peer to Peer\":\nJan, Marie:\nJ: Ist das immernoch Design, so ein Community-Projekt zu gestalten?\nM: Ich finde es\u00a0sehr schwer, Design zu definieren und mittlerweile umfa\u00dft der Designbegriff mehr als nur Produkte, sondern vor allem auch Prozesse.\nJ: Was ist dann der gro\u00dfe Unterschied zwischen einem Designer und einem Manager, wenn es um Prozesse geht?\nM: Das klingt jetzt eher klischeehaft, aber es hei\u00dft, der Manager sieht alles eher auf\u00a0sich bezogen, auf Profit.\u00a0Als Designer ist man vielleicht eher ergebnisorientiert. \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0\nJ: Hast du schon eine Idee von etwas, was man im Sinne von OpenCare gestalten\u00a0k\u00f6nnte?\nM: Ehrlich gesagt, nein.\nJ: Man k\u00f6nnte erst einmal von Bed\u00fcrfnissen ausgehen, z.B. eine App, die deine Bed\u00fcrfnisse aufzeichnet und ein Profil erstellt.\nM: Ich bin skeptisch gegen\u00fcber Apps. Es sollte andere M\u00f6glichkeiten geben. Ich pers\u00f6nlich benutze nicht so oft Apps, weil ich nicht gerne\u00a0von meinem Handy abh\u00e4ngig sein m\u00f6chte, und es andere M\u00f6glichkeiten der Kommunikation geben sollte.\nJ: Aber hast du ein Beispiel von sehr guten Design, was dich dazu inspiriert hat, Design zu studieren?\nM: Ich bin eher zuf\u00e4llig darauf gesto\u00dfen. Urspr\u00fcnglich kam ich auf die Kunst, aber\u00a0das Design gibt dir die M\u00f6glichkeit mehr als nur auszudr\u00fccken,\u00a0sondern auch einen Nutzen zu kreieren. Kunst ist zwar Kommunikation, aber nicht in dem Ausma\u00dfe des Designs.\nJ: Was denkst du, sind die St\u00e4rken des Designers im Gegenzug zum K\u00fcnstler?\nM: Der K\u00fcnstler wirft Fragen auf, ohne jedoch eine Antwort zu geben, er macht\u00a0nur bewu\u00dft. Der Designer hingegen l\u00f6st die Probleme, die er findet.\nJ: Sehr sch\u00f6ne Metapher.\u00a0Kannst du mir ein Beispiel von fl\u00fcssigem Design nennen? Also etwas was nicht\u00a0solide im Raum steht? Oder habt ihr so etwas schon im Studium gehabt?\n\nM: Wir hatten im\u00a0letzten Semester Critical Design zum Thema. Das war eher prozessorien orientiert, w\u00fcrde ich sagen, da es Awareness kreiert, ohne ein solides Produkt.\nIch hatte dazu ein Spiel gestaltet, das Leuten wieder zu einer analogen Kontaktart verhelfen sollte, und gleichzeitig zum Nachdenken anregen soll, was Menschen im Internet von sich preisgeben.\nJ: Jetzt zu OpenCare. Sagen wir, viele Menschen bewegen sich, und nehmen im mer wieder andere Systeme in Anspruch.\nM: Eine M\u00f6glichkeit w\u00e4re zB ein nationen\u00fcbergreifendes System, da\u00df jeder, egal wo er sich gerade befindet, auf sein CareSystem zugreifen kann.\u00a0\n","comment_id":"22210","post_id":"6189","user_id":"8590","parent_comment_id":"0","creation_date":"Tuesday, April 5, 2016 - 00:07","group_id":"0"}},{"node":{"title":"Pics of the event at WeMake!","content":"\nhttps:\/\/www.flickr.com\/photos\/wemake_cc\/sets\/72157666029895050\n\n@Cristina Martellosio\n@Costantino\n@Nadia\n@Rossana Torri\n@alessandro contini\n@ChiaraFrr\n","comment_id":"22172","post_id":"6142","user_id":"8307","parent_comment_id":"0","creation_date":"Friday, April 1, 2016 - 13:43","group_id":"5954"}},{"node":{"title":"Pics of the event at WeMake!","content":"\nhttps:\/\/www.flickr.com\/photos\/wemake_cc\/sets\/72157666029895050\n\n@Cristina Martellosio\n@Costantino\n@Nadia\n@Rossana Torri\n@alessandro contini\n@ChiaraFrr\n","comment_id":"22172","post_id":"6142","user_id":"8307","parent_comment_id":"0","creation_date":"Friday, April 1, 2016 - 13:43","group_id":"5954"}},{"node":{"title":"Curious how this could work for less resourceful newcomers","content":"\nHi @Alberto, nice to read you again on this topic.\nSo: together when you want to be, but apart when you want to be apart.\nIt seems like your group has found just the right balance between couple intimacy and social sharing of the space, which is something that would scare many of us grownups. There is something about growing mature that makes one more and more into their own ways, and less willing to take on 'adventurous' lifestyles. Maybe it's not obvious now how that\u00a0pays off tenfold in the long term (i.e. family surrogates).\u00a0\nDo you think this setup can work if not all of you were middle class (as precarious or as unstable as middle class can be)?\u00a0If someone joins but they soon fall off because of too low\u00a0earnings, will the rest be able to catch them?\n","comment_id":"22167","post_id":"6170","user_id":"32","parent_comment_id":"0","creation_date":"Friday, April 1, 2016 - 11:18","group_id":"0"}},{"node":{"title":"Great, thanks !","content":"\nGreat, thanks !\nJust let me know when you are ready. :)\n\u00a0\n","comment_id":"22160","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 13:00","group_id":"5954"}},{"node":{"title":"Great, thanks !","content":"\nGreat, thanks !\nJust let me know when you are ready. :)\n\u00a0\n","comment_id":"22160","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 13:00","group_id":"5954"}},{"node":{"title":"Great, thanks !","content":"\nGreat, thanks !\nJust let me know when you are ready. :)\n\u00a0\n","comment_id":"22160","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 13:00","group_id":"5954"}},{"node":{"title":"Ok Ill set up a deck of slides","content":"\nand we can put in the stuff we need there. Will try to get done by monday.\n","comment_id":"22159","post_id":"6137","user_id":"45","parent_comment_id":"22158","creation_date":"Thursday, March 31, 2016 - 12:41","group_id":"5954"}},{"node":{"title":"Ok Ill set up a deck of slides","content":"\nand we can put in the stuff we need there. Will try to get done by monday.\n","comment_id":"22159","post_id":"6137","user_id":"45","parent_comment_id":"22158","creation_date":"Thursday, March 31, 2016 - 12:41","group_id":"5954"}},{"node":{"title":"Ok Ill set up a deck of slides","content":"\nand we can put in the stuff we need there. Will try to get done by monday.\n","comment_id":"22159","post_id":"6137","user_id":"45","parent_comment_id":"22158","creation_date":"Thursday, March 31, 2016 - 12:41","group_id":"5954"}},{"node":{"title":"Presentation","content":"\nWe are late according to the EC, since the platform\u00a0was planned in the Annex 1 of the GA to be fully operational by the end of February and we should have submitted information by that time.\nI think the delay\u00a0may be acceptable by the EC, since we can explain in our reports\u00a0that the platform was mainly ready in due time,\u00a0that edgeryders introduced it during\u00a0the kick-off, with extra adjustments related to users' comments\/experiences being carried out in March.\nUnfortunately, I don't have any specific template nor guidelines\u00a0about the way we should present the plateform,\u00a0the content is free.\nWe could prepare some short presentation (1 to 2 pages) using these themes:\u00a0structure, motives, scientfic outcomes.\nIt could then\u00a0relate to the Description of Action and could be used again for public dissemination (maybe?).\n\u00a0\n","comment_id":"22158","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 12:27","group_id":"5954"}},{"node":{"title":"Presentation","content":"\nWe are late according to the EC, since the platform\u00a0was planned in the Annex 1 of the GA to be fully operational by the end of February and we should have submitted information by that time.\nI think the delay\u00a0may be acceptable by the EC, since we can explain in our reports\u00a0that the platform was mainly ready in due time,\u00a0that edgeryders introduced it during\u00a0the kick-off, with extra adjustments related to users' comments\/experiences being carried out in March.\nUnfortunately, I don't have any specific template nor guidelines\u00a0about the way we should present the plateform,\u00a0the content is free.\nWe could prepare some short presentation (1 to 2 pages) using these themes:\u00a0structure, motives, scientfic outcomes.\nIt could then\u00a0relate to the Description of Action and could be used again for public dissemination (maybe?).\n\u00a0\n","comment_id":"22158","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 12:27","group_id":"5954"}},{"node":{"title":"Presentation","content":"\nWe are late according to the EC, since the platform\u00a0was planned in the Annex 1 of the GA to be fully operational by the end of February and we should have submitted information by that time.\nI think the delay\u00a0may be acceptable by the EC, since we can explain in our reports\u00a0that the platform was mainly ready in due time,\u00a0that edgeryders introduced it during\u00a0the kick-off, with extra adjustments related to users' comments\/experiences being carried out in March.\nUnfortunately, I don't have any specific template nor guidelines\u00a0about the way we should present the plateform,\u00a0the content is free.\nWe could prepare some short presentation (1 to 2 pages) using these themes:\u00a0structure, motives, scientfic outcomes.\nIt could then\u00a0relate to the Description of Action and could be used again for public dissemination (maybe?).\n\u00a0\n","comment_id":"22158","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 12:27","group_id":"5954"}},{"node":{"title":"Why late?","content":"\nThe online space is live: http:\/\/opencare.cc\u00a0what other work you are seeing being done is tweaks. Unless I am completely missing something?\nPresentation of the platform: Do you have a template or questions we need to answer more specifically? It will not take long to do this and certainly before April 15 should not be a problem.\n","comment_id":"22157","post_id":"6137","user_id":"45","parent_comment_id":"22156","creation_date":"Thursday, March 31, 2016 - 11:41","group_id":"5954"}},{"node":{"title":"Why late?","content":"\nThe online space is live: http:\/\/opencare.cc\u00a0what other work you are seeing being done is tweaks. Unless I am completely missing something?\nPresentation of the platform: Do you have a template or questions we need to answer more specifically? It will not take long to do this and certainly before April 15 should not be a problem.\n","comment_id":"22157","post_id":"6137","user_id":"45","parent_comment_id":"22156","creation_date":"Thursday, March 31, 2016 - 11:41","group_id":"5954"}},{"node":{"title":"Why late?","content":"\nThe online space is live: http:\/\/opencare.cc\u00a0what other work you are seeing being done is tweaks. Unless I am completely missing something?\nPresentation of the platform: Do you have a template or questions we need to answer more specifically? It will not take long to do this and certainly before April 15 should not be a problem.\n","comment_id":"22157","post_id":"6137","user_id":"45","parent_comment_id":"22156","creation_date":"Thursday, March 31, 2016 - 11:41","group_id":"5954"}},{"node":{"title":"April 15th - another deadline coming","content":"\nHi everyone,\u00a0\nWe have another deadline (upcoming deliverable) :\nWP2, Deliverable 2.1:\u00a0Deployed, tested OpenCare online space on the production server \nWhat we need to submit :\u00a0presentation of the platform (structure, motives, scientfic outcomes)\u00a0+\u00a0links to the Op3nCare workspaces\nWhen:\u00a0by April 15th (if possible). We are already late - just let me know if this date\u00a0sounds realistic or not.\u00a0\n\u00a0\n","comment_id":"22156","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 11:31","group_id":"5954"}},{"node":{"title":"April 15th - another deadline coming","content":"\nHi everyone,\u00a0\nWe have another deadline (upcoming deliverable) :\nWP2, Deliverable 2.1:\u00a0Deployed, tested OpenCare online space on the production server \nWhat we need to submit :\u00a0presentation of the platform (structure, motives, scientfic outcomes)\u00a0+\u00a0links to the Op3nCare workspaces\nWhen:\u00a0by April 15th (if possible). We are already late - just let me know if this date\u00a0sounds realistic or not.\u00a0\n\u00a0\n","comment_id":"22156","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 11:31","group_id":"5954"}},{"node":{"title":"April 15th - another deadline coming","content":"\nHi everyone,\u00a0\nWe have another deadline (upcoming deliverable) :\nWP2, Deliverable 2.1:\u00a0Deployed, tested OpenCare online space on the production server \nWhat we need to submit :\u00a0presentation of the platform (structure, motives, scientfic outcomes)\u00a0+\u00a0links to the Op3nCare workspaces\nWhen:\u00a0by April 15th (if possible). We are already late - just let me know if this date\u00a0sounds realistic or not.\u00a0\n\u00a0\n","comment_id":"22156","post_id":"6137","user_id":"8382","parent_comment_id":"0","creation_date":"Thursday, March 31, 2016 - 11:31","group_id":"5954"}},{"node":{"title":"Reaching out to medical practitioners","content":"\nIn order for briefs to be efficient in terms of engaging people to relate deeply and submit stories, they need to be rock solid in providing background information about the topic - short and well packaged, but\u00a0to the point and credible. It is that background info that helps us contextualize issues and ask very good\u00a0questions.\u00a0It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.\nAny way you guys can share\u00a0the\u00a0drafts linked above\u00a0with your networks asking people what is it that they find most important to ask when it comes to coming up with effective, community\u00a0solutions?\nAlso, let me know if you know\u00a0professionals that are also\u00a0good writers whom we can approach for writing\u00a0stories in response to the themes - personal experiences and takes on the issue (example\u00a0of a contribution)\n\u00a0\n","comment_id":"22143","post_id":"6128","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, March 30, 2016 - 16:42","group_id":"5954"}},{"node":{"title":"Reaching out to medical practitioners","content":"\nIn order for briefs to be efficient in terms of engaging people to relate deeply and submit stories, they need to be rock solid in providing background information about the topic - short and well packaged, but\u00a0to the point and credible. It is that background info that helps us contextualize issues and ask very good\u00a0questions.\u00a0It seems that especially for dementia and suicide, it would be great to have people with medical training sharing information or pointing us to useful resources.\nAny way you guys can share\u00a0the\u00a0drafts linked above\u00a0with your networks asking people what is it that they find most important to ask when it comes to coming up with effective, community\u00a0solutions?\nAlso, let me know if you know\u00a0professionals that are also\u00a0good writers whom we can approach for writing\u00a0stories in response to the themes - personal experiences and takes on the issue (example\u00a0of a contribution)\n\u00a0\n","comment_id":"22143","post_id":"6128","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, March 30, 2016 - 16:42","group_id":"5954"}},{"node":{"title":"Hey Darren","content":"\nI'll be going to EMF.\nBooked my tickets a few weeks back.\nThey're still got workshop spaces open.\nYou should definitely bring your biochar rocket-stove. Ian, the blacksmith who's running the open forge sessions, would be interested, as well as a few others i know.\nAlso have a look at Wevolver.com. They're tring to be a Github for Open Source HardWare. I'm hosting one of my projects there,\u00a0https:\/\/www.wevolver.com\/billy.smith\/reservoir-planters\/main\/description\/\nAnother project that i've been helping out with can be found here,\u00a0http:\/\/r-urban-wick.net\/events\/learn-to-build-an-anaerobic-digester\n","comment_id":"22131","post_id":"6110","user_id":"6220","parent_comment_id":"22127","creation_date":"Wednesday, March 30, 2016 - 11:00","group_id":"5954"}},{"node":{"title":"Hey Darren","content":"\nI'll be going to EMF.\nBooked my tickets a few weeks back.\nThey're still got workshop spaces open.\nYou should definitely bring your biochar rocket-stove. Ian, the blacksmith who's running the open forge sessions, would be interested, as well as a few others i know.\nAlso have a look at Wevolver.com. They're tring to be a Github for Open Source HardWare. I'm hosting one of my projects there,\u00a0https:\/\/www.wevolver.com\/billy.smith\/reservoir-planters\/main\/description\/\nAnother project that i've been helping out with can be found here,\u00a0http:\/\/r-urban-wick.net\/events\/learn-to-build-an-anaerobic-digester\n","comment_id":"22131","post_id":"6110","user_id":"6220","parent_comment_id":"22127","creation_date":"Wednesday, March 30, 2016 - 11:00","group_id":"5954"}},{"node":{"title":"EMF","content":"\nJust caught this @phm - don't know if @ pinging was working correctly when you posted?\nI've been considering emfcamp.\u00a0 I'm part of a mobile hackspace\/workshop project and back in January made the proposal to do something with our workshop at EMF, but nobody else appeared interested.\u00a0\nI've been thinking about doing some kind of fantastical area at an event for a while, something inspired by madmax, solarpunk and\u00a0https:\/\/archive.org\/details\/NomadicEcoVillages - not quite sure how\/if that would fit in with OpenCare, although I guess it could?\u00a0\npinging @Billy Smith in the hope that the pings are working again :)\n\u00a0\n","comment_id":"22127","post_id":"6110","user_id":"439","parent_comment_id":"21998","creation_date":"Wednesday, March 30, 2016 - 02:08","group_id":"5954"}},{"node":{"title":"EMF","content":"\nJust caught this @phm - don't know if @ pinging was working correctly when you posted?\nI've been considering emfcamp.\u00a0 I'm part of a mobile hackspace\/workshop project and back in January made the proposal to do something with our workshop at EMF, but nobody else appeared interested.\u00a0\nI've been thinking about doing some kind of fantastical area at an event for a while, something inspired by madmax, solarpunk and\u00a0https:\/\/archive.org\/details\/NomadicEcoVillages - not quite sure how\/if that would fit in with OpenCare, although I guess it could?\u00a0\npinging @Billy Smith in the hope that the pings are working again :)\n\u00a0\n","comment_id":"22127","post_id":"6110","user_id":"439","parent_comment_id":"21998","creation_date":"Wednesday, March 30, 2016 - 02:08","group_id":"5954"}},{"node":{"title":"Well spotted Guy","content":"\nThe event seems professional and that fact that it's well thought of in advance probably means it's\u00a0good outreach if we participate.\u00a0So already Edgeryders is in, whether it's us personally\u00a0attending or OpenCare Fellows, that is something we can discuss. I would see projects we find in the community attend\u00a0the hackathon as a project development\u00a0perk, only those we'll know in some weeks from now.\n\u00a0\n","comment_id":"22075","post_id":"6041","user_id":"32","parent_comment_id":"22063","creation_date":"Friday, March 25, 2016 - 14:22","group_id":"5954"}},{"node":{"title":"Well spotted Guy","content":"\nThe event seems professional and that fact that it's well thought of in advance probably means it's\u00a0good outreach if we participate.\u00a0So already Edgeryders is in, whether it's us personally\u00a0attending or OpenCare Fellows, that is something we can discuss. I would see projects we find in the community attend\u00a0the hackathon as a project development\u00a0perk, only those we'll know in some weeks from now.\n\u00a0\n","comment_id":"22075","post_id":"6041","user_id":"32","parent_comment_id":"22063","creation_date":"Friday, March 25, 2016 - 14:22","group_id":"5954"}},{"node":{"title":"That works","content":"\nthanks!\n","comment_id":"22073","post_id":"6143","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, March 25, 2016 - 03:43","group_id":"5954"}},{"node":{"title":"That works","content":"\nthanks!\n","comment_id":"22073","post_id":"6143","user_id":"8169","parent_comment_id":"0","creation_date":"Friday, March 25, 2016 - 03:43","group_id":"5954"}},{"node":{"title":"Try this","content":"\nhttp:\/\/cds.cern.ch\/journal\/CERNBulletin\/2016\/11\/News%20Articles\/2137964?ln=en\n\u00a0\nCopy and paste in browser\n","comment_id":"22072","post_id":"6143","user_id":"3855","parent_comment_id":"0","creation_date":"Friday, March 25, 2016 - 03:36","group_id":"5954"}},{"node":{"title":"Try this","content":"\nhttp:\/\/cds.cern.ch\/journal\/CERNBulletin\/2016\/11\/News%20Articles\/2137964?ln=en\n\u00a0\nCopy and paste in browser\n","comment_id":"22072","post_id":"6143","user_id":"3855","parent_comment_id":"0","creation_date":"Friday, March 25, 2016 - 03:36","group_id":"5954"}},{"node":{"title":"The CERN link","content":"\nSays \"denied\" when I try to go there. \u00a0The TED links work ok.\n","comment_id":"22066","post_id":"6143","user_id":"8169","parent_comment_id":"0","creation_date":"Thursday, March 24, 2016 - 19:41","group_id":"5954"}},{"node":{"title":"The CERN link","content":"\nSays \"denied\" when I try to go there. \u00a0The TED links work ok.\n","comment_id":"22066","post_id":"6143","user_id":"8169","parent_comment_id":"0","creation_date":"Thursday, March 24, 2016 - 19:41","group_id":"5954"}},{"node":{"title":"let's do it","content":"\nI'm game. We could organise an Op3n Hangout call dedicated to this rel. soon. It clicks with some things I am exploring including a pitch to Fedasil (Belgian Federal agency that manages all the refugee reception centres in the country).\n","comment_id":"22063","post_id":"6041","user_id":"45","parent_comment_id":"22060","creation_date":"Thursday, March 24, 2016 - 16:12","group_id":"5954"}},{"node":{"title":"let's do it","content":"\nI'm game. We could organise an Op3n Hangout call dedicated to this rel. soon. It clicks with some things I am exploring including a pitch to Fedasil (Belgian Federal agency that manages all the refugee reception centres in the country).\n","comment_id":"22063","post_id":"6041","user_id":"45","parent_comment_id":"22060","creation_date":"Thursday, March 24, 2016 - 16:12","group_id":"5954"}},{"node":{"title":"Sounds great","content":"\nan excellent opportunity.\n","comment_id":"22062","post_id":"6041","user_id":"8169","parent_comment_id":"0","creation_date":"Thursday, March 24, 2016 - 15:59","group_id":"5954"}},{"node":{"title":"Sounds great","content":"\nan excellent opportunity.\n","comment_id":"22062","post_id":"6041","user_id":"8169","parent_comment_id":"0","creation_date":"Thursday, March 24, 2016 - 15:59","group_id":"5954"}},{"node":{"title":"Update on  Hacking Health Bordeaux Event","content":"\nEdgeRyders: @Alberto @Nadia @Noemi SCImpulse:\u00a0@Massimo @markomanka EHFF: @Lakomaa WeMake: @Costantino @zoescope\u00a0Milano: @Rossana Torri\nand I am sure I miss some people -- please let them know (the mention thing is not fu...nctioning, not totally).\n---\nI just met with the local organizers of the Bordeaux Health Hacking event to take place next Fall in Bordeaux. This post awaits a clear answer from everyone in our consortium. I need to get back at\u00a0the organizers with a set of proposals in the coming month.\n---\nWe are com-ple-te-ly in line with their view on Social Care and how Health Hacking can change the game. The Health Hacking event is actually a\u00a0trademarked event that originated in Canada (I might meet with co-founder \u00a0Luc Sirois on the occasion of a travel in Quebec in April). They have a Europe wide yearly edition that usually takes place in Strasbourg.\nI believe we have advantage of being part of this event in Bordeaux. I would encourage as many of you as possible to join. Here are a list of things we could do:\n\nThe event starts with a one-day of talks. We can ask to have a 1\/2 hour slot to talk about what\/how\/why we are doing. I am sure a combination of visions emerging from EdgeRyders\/ScImpulse\/WeMake\/(Milano?) will be of interest to a majority of people attending the conference. (Did you know 50% of gross salles -- chiffre d'affaires in French -- in technology related health business is made in Aquitaine?).\nThe event then welcomes a hackaton where teams work on project that are pitched in by sponsors (companies, organizations, name it). Each project is pitched in on Friday evening; teams form around projects and useful competencies; other people are there to coach teams\u00a0on tech, legal, medical or any other aspects during the whole duration of the hackaton.\nProject output are graded and prizes are offered to teams -- no money, but rather accompanying measures to help teams go forward with their ideas and prototypes.\n\n OpenCare could well pitch in a project on which team(s) would work. This could be an opportunity to recruit competencies we find necessary for a prototype we have in view.\n\n\n\nI feel this is a not-to-miss opportunity. I know the\u00a0EC funded OpenCare has a short, two years life to live, but OpenCare should make it so to last much longer. By discussing with the local organizers -- they happen to both be medical practitioners and tech passionates, I could\u00a0foresee potential future projects on a vast panel\u00a0of topics.\n\u00a0\n","comment_id":"22060","post_id":"6041","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, March 24, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"Update on  Hacking Health Bordeaux Event","content":"\nEdgeRyders: @Alberto @Nadia @Noemi SCImpulse:\u00a0@Massimo @markomanka EHFF: @Lakomaa WeMake: @Costantino @zoescope\u00a0Milano: @Rossana Torri\nand I am sure I miss some people -- please let them know (the mention thing is not fu...nctioning, not totally).\n---\nI just met with the local organizers of the Bordeaux Health Hacking event to take place next Fall in Bordeaux. This post awaits a clear answer from everyone in our consortium. I need to get back at\u00a0the organizers with a set of proposals in the coming month.\n---\nWe are com-ple-te-ly in line with their view on Social Care and how Health Hacking can change the game. The Health Hacking event is actually a\u00a0trademarked event that originated in Canada (I might meet with co-founder \u00a0Luc Sirois on the occasion of a travel in Quebec in April). They have a Europe wide yearly edition that usually takes place in Strasbourg.\nI believe we have advantage of being part of this event in Bordeaux. I would encourage as many of you as possible to join. Here are a list of things we could do:\n\nThe event starts with a one-day of talks. We can ask to have a 1\/2 hour slot to talk about what\/how\/why we are doing. I am sure a combination of visions emerging from EdgeRyders\/ScImpulse\/WeMake\/(Milano?) will be of interest to a majority of people attending the conference. (Did you know 50% of gross salles -- chiffre d'affaires in French -- in technology related health business is made in Aquitaine?).\nThe event then welcomes a hackaton where teams work on project that are pitched in by sponsors (companies, organizations, name it). Each project is pitched in on Friday evening; teams form around projects and useful competencies; other people are there to coach teams\u00a0on tech, legal, medical or any other aspects during the whole duration of the hackaton.\nProject output are graded and prizes are offered to teams -- no money, but rather accompanying measures to help teams go forward with their ideas and prototypes.\n\n OpenCare could well pitch in a project on which team(s) would work. This could be an opportunity to recruit competencies we find necessary for a prototype we have in view.\n\n\n\nI feel this is a not-to-miss opportunity. I know the\u00a0EC funded OpenCare has a short, two years life to live, but OpenCare should make it so to last much longer. By discussing with the local organizers -- they happen to both be medical practitioners and tech passionates, I could\u00a0foresee potential future projects on a vast panel\u00a0of topics.\n\u00a0\n","comment_id":"22060","post_id":"6041","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, March 24, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"Innovation for everybody","content":"\nI'm glad to share with you this two short videos that, in my view, express the essence of Open Care. Innovation for everybody.\nhttps:\/\/drive.google.com\/file\/d\/0B5EClZGelAvnejdjT0RPa2RuRXc\/view?usp=sharing\nhttps:\/\/drive.google.com\/file\/d\/0B5EClZGelAvncDdydTRxRmdLRzA\/view?usp=sharing\nSome nice\u00a0stuff to share with you soon!\n\u00a0\n","comment_id":"22052","post_id":"6078","user_id":"8541","parent_comment_id":"0","creation_date":"Wednesday, March 23, 2016 - 10:22","group_id":"5954"}},{"node":{"title":"Innovation for everybody","content":"\nI'm glad to share with you this two short videos that, in my view, express the essence of Open Care. Innovation for everybody.\nhttps:\/\/drive.google.com\/file\/d\/0B5EClZGelAvnejdjT0RPa2RuRXc\/view?usp=sharing\nhttps:\/\/drive.google.com\/file\/d\/0B5EClZGelAvncDdydTRxRmdLRzA\/view?usp=sharing\nSome nice\u00a0stuff to share with you soon!\n\u00a0\n","comment_id":"22052","post_id":"6078","user_id":"8541","parent_comment_id":"0","creation_date":"Wednesday, March 23, 2016 - 10:22","group_id":"5954"}},{"node":{"title":"cool","content":"\nThis is very cool, we should bring Nagler\u00a0into the conversation!\u00a0\n@Noemi\n","comment_id":"22040","post_id":"6109","user_id":"2604","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 21:46","group_id":"5954"}},{"node":{"title":"cool","content":"\nThis is very cool, we should bring Nagler\u00a0into the conversation!\u00a0\n@Noemi\n","comment_id":"22040","post_id":"6109","user_id":"2604","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 21:46","group_id":"5954"}},{"node":{"title":"Agreed, thanks. First up- dementia","content":"\nOk,\nPeople on the move makes a lot of sense. It includes people who move for any number of reasons. But we then need to give people some examples of what might fall under that, e.g. People fleeing war, People moving abroad to study, working mostly online and living in different parts of the world etc.\nI'll prepare the\u00a0 docs for the other two, for now, have a look and contribute to shaping the brief to would be participants for the dementia related initiatives in this shared document?\nAnother\u00a0 helpful contribution would be to share your own reflections on this after the workshop we both participated in during lote5. I'm doing the same further below in the same document\n\u00a0\n","comment_id":"22036","post_id":"6128","user_id":"45","parent_comment_id":"22032","creation_date":"Monday, March 21, 2016 - 19:29","group_id":"5954"}},{"node":{"title":"Agreed, thanks. First up- dementia","content":"\nOk,\nPeople on the move makes a lot of sense. It includes people who move for any number of reasons. But we then need to give people some examples of what might fall under that, e.g. People fleeing war, People moving abroad to study, working mostly online and living in different parts of the world etc.\nI'll prepare the\u00a0 docs for the other two, for now, have a look and contribute to shaping the brief to would be participants for the dementia related initiatives in this shared document?\nAnother\u00a0 helpful contribution would be to share your own reflections on this after the workshop we both participated in during lote5. I'm doing the same further below in the same document\n\u00a0\n","comment_id":"22036","post_id":"6128","user_id":"45","parent_comment_id":"22032","creation_date":"Monday, March 21, 2016 - 19:29","group_id":"5954"}},{"node":{"title":"Mostly agree","content":"\nOpening domains allows us to capture potentially more great examples. For example, there is probably nothing to be gained by restricting to hackers the suicide prevention story (we are looking into it as part of a different piece of work we are doing in Galway: apparently, suicide is endemic in the West of Ireland). If we just look into suicide prevention, we can still fetch all of the stories coming from the hacker community.\u00a0\nOn the other hand, suicide prevention is more suited to community-driven solution than treating mental distress. Why? Because it's about someone being there at the right time, pulling the suicidal person away from the brink. This presents interestingly specific challenges.\u00a0In this case we might lose some focus if we move over to \"mental distress\".\u00a0\n","comment_id":"22035","post_id":"6128","user_id":"34","parent_comment_id":"22032","creation_date":"Monday, March 21, 2016 - 19:29","group_id":"5954"}},{"node":{"title":"Mostly agree","content":"\nOpening domains allows us to capture potentially more great examples. For example, there is probably nothing to be gained by restricting to hackers the suicide prevention story (we are looking into it as part of a different piece of work we are doing in Galway: apparently, suicide is endemic in the West of Ireland). If we just look into suicide prevention, we can still fetch all of the stories coming from the hacker community.\u00a0\nOn the other hand, suicide prevention is more suited to community-driven solution than treating mental distress. Why? Because it's about someone being there at the right time, pulling the suicidal person away from the brink. This presents interestingly specific challenges.\u00a0In this case we might lose some focus if we move over to \"mental distress\".\u00a0\n","comment_id":"22035","post_id":"6128","user_id":"34","parent_comment_id":"22032","creation_date":"Monday, March 21, 2016 - 19:29","group_id":"5954"}},{"node":{"title":"comments on two domains","content":"\nhi Alberto,\u00a0\nwe agree on you summary,\nwe feedbacked Nadia on the other thread regarding the domains of action\nhttps:\/\/edgeryders.eu\/en\/comment\/22032#comment-22032\nbest\nZoe\n","comment_id":"22033","post_id":"6040","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 18:38","group_id":"5954"}},{"node":{"title":"comments on two domains","content":"\nhi Alberto,\u00a0\nwe agree on you summary,\nwe feedbacked Nadia on the other thread regarding the domains of action\nhttps:\/\/edgeryders.eu\/en\/comment\/22032#comment-22032\nbest\nZoe\n","comment_id":"22033","post_id":"6040","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 18:38","group_id":"5954"}},{"node":{"title":"comments on two domains","content":"\nHi Nadia,\nWe agree with what you propose, we have a couple of comments regarding two of the domains:\n\n\nsocial\/health care to refugees\n \n\nWhy focus only on refugees and not on migrants in general? Or if we don\u2019t want to call them migrants and refugees, let\u2019s call them something like people in movement without papers: Sans-Papier\n\n\nPrevention of Suicide in the hacker community\n \n\nThis target is a bit too tight on hackers and becomes then necessary define what is a hacker and we think we could get stuck in this conversation (ie. why only hackers and \u00a0not makers? what are really hackers?)\u00a0.\nWhy don\u2019t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?\nbest\nZoe\n","comment_id":"22032","post_id":"6128","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 18:37","group_id":"5954"}},{"node":{"title":"comments on two domains","content":"\nHi Nadia,\nWe agree with what you propose, we have a couple of comments regarding two of the domains:\n\n\nsocial\/health care to refugees\n \n\nWhy focus only on refugees and not on migrants in general? Or if we don\u2019t want to call them migrants and refugees, let\u2019s call them something like people in movement without papers: Sans-Papier\n\n\nPrevention of Suicide in the hacker community\n \n\nThis target is a bit too tight on hackers and becomes then necessary define what is a hacker and we think we could get stuck in this conversation (ie. why only hackers and \u00a0not makers? what are really hackers?)\u00a0.\nWhy don\u2019t we focus on the domain of mental distress (or psychological distress) in high-tech service sector?\nbest\nZoe\n","comment_id":"22032","post_id":"6128","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 18:37","group_id":"5954"}},{"node":{"title":"What is OpenCare about? A tentative wrapup of this thread","content":"\nOk guys, here's what I understood:\n\nOpenCare studies community-driven care services. This means \"activities of giving care to people that need it, and that are open to anyone's participation\" (Ezio's A1). For example: the Helliniko Community Clinic.\nOur attention is on how\u00a0these things come into being. This means we are focusing on the design choices of their protagonists and to the emergent social dynamics driving them (Ezio's B2).\u00a0For example, we consider how the design move of\u00a0not\u00a0incorporating enabled the Helliniko Community Clinic to work like it does. This is all set against an institutional backdrop. Example: liability for doctors in Greece is attached to the doctors themselves, whereas in Sweden it is attached to the hospitals.\nThis is all a bit too abstract to prompt an online conversation, so we start by looking at community driven care activities in three domains: social\/health care to refugees; suicide prevention; and treatment of dementia (more).\u00a0\n\nIs that clearer now? Do you all agree? @Ezio Manzini, I am particularly interested in your say. Here's why: at this point of my thinking, I am seeing design as the main discipline from which to cast our aspirational high-impact publication. I do not think anymore we (i.e. \"society\") can \"solve\" the crisis in health and social care, like a mathematician would be tempted to do. Nor do I think we can \"optmise\" for it \u2013 this is how an economist would go about it. But I do think we can make a move towards higher grounds in the fitness landscape; and moves is what designers do.\u00a0\nBut, if you (or the others) are not convinced, then it's back to the drawing board. I agree with you that we need to be on the same page here.\u00a0\n","comment_id":"22030","post_id":"6040","user_id":"34","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 17:17","group_id":"5954"}},{"node":{"title":"What is OpenCare about? A tentative wrapup of this thread","content":"\nOk guys, here's what I understood:\n\nOpenCare studies community-driven care services. This means \"activities of giving care to people that need it, and that are open to anyone's participation\" (Ezio's A1). For example: the Helliniko Community Clinic.\nOur attention is on how\u00a0these things come into being. This means we are focusing on the design choices of their protagonists and to the emergent social dynamics driving them (Ezio's B2).\u00a0For example, we consider how the design move of\u00a0not\u00a0incorporating enabled the Helliniko Community Clinic to work like it does. This is all set against an institutional backdrop. Example: liability for doctors in Greece is attached to the doctors themselves, whereas in Sweden it is attached to the hospitals.\nThis is all a bit too abstract to prompt an online conversation, so we start by looking at community driven care activities in three domains: social\/health care to refugees; suicide prevention; and treatment of dementia (more).\u00a0\n\nIs that clearer now? Do you all agree? @Ezio Manzini, I am particularly interested in your say. Here's why: at this point of my thinking, I am seeing design as the main discipline from which to cast our aspirational high-impact publication. I do not think anymore we (i.e. \"society\") can \"solve\" the crisis in health and social care, like a mathematician would be tempted to do. Nor do I think we can \"optmise\" for it \u2013 this is how an economist would go about it. But I do think we can make a move towards higher grounds in the fitness landscape; and moves is what designers do.\u00a0\nBut, if you (or the others) are not convinced, then it's back to the drawing board. I agree with you that we need to be on the same page here.\u00a0\n","comment_id":"22030","post_id":"6040","user_id":"34","parent_comment_id":"0","creation_date":"Monday, March 21, 2016 - 17:17","group_id":"5954"}},{"node":{"title":"+1","content":"\nI strongly agree with @Alberto\u00a0\nThe meaning of my statement above are: people\u00a0are already implementing A1 systems\u00a0(they deliver care and they are open) by making A2 stuff (inventing and producing services etc.). We conjecture that openness in the process (2) is an enabler of A1. More precisely, we conjecture that without open processes (B2) there can be no open care (A1), but the reverse is not true.\u00a0You can use open, participatory processes to design closed systems and artifacts. I guess the implication is to study closely the B2 side of things, and how openness in the process results (or not) in A1-type open care.\u00a0 -\n","comment_id":"22016","post_id":"6040","user_id":"2604","parent_comment_id":"22006","creation_date":"Sunday, March 20, 2016 - 21:29","group_id":"5954"}},{"node":{"title":"+1","content":"\nI strongly agree with @Alberto\u00a0\nThe meaning of my statement above are: people\u00a0are already implementing A1 systems\u00a0(they deliver care and they are open) by making A2 stuff (inventing and producing services etc.). We conjecture that openness in the process (2) is an enabler of A1. More precisely, we conjecture that without open processes (B2) there can be no open care (A1), but the reverse is not true.\u00a0You can use open, participatory processes to design closed systems and artifacts. I guess the implication is to study closely the B2 side of things, and how openness in the process results (or not) in A1-type open care.\u00a0 -\n","comment_id":"22016","post_id":"6040","user_id":"2604","parent_comment_id":"22006","creation_date":"Sunday, March 20, 2016 - 21:29","group_id":"5954"}},{"node":{"title":"case in point","content":"\nhttp:\/\/metro.co.uk\/2016\/03\/15\/hackers-could-take-over-your-dildo-and-make-it-go-berserk-expert-warns-5754496\/\n","comment_id":"22011","post_id":"6117","user_id":"5158","parent_comment_id":"0","creation_date":"Saturday, March 19, 2016 - 02:57","group_id":"5954"}},{"node":{"title":"case in point","content":"\nhttp:\/\/metro.co.uk\/2016\/03\/15\/hackers-could-take-over-your-dildo-and-make-it-go-berserk-expert-warns-5754496\/\n","comment_id":"22011","post_id":"6117","user_id":"5158","parent_comment_id":"0","creation_date":"Saturday, March 19, 2016 - 02:57","group_id":"5954"}},{"node":{"title":"On care and communities: Situations, Relationships, Contexts","content":"\n\nHi everyone,\n\n\n\u00a0\n\n\nI have been thinking and trying to make sense of @Ezio, @LuceChiodelliUB , @Costantino and @Alberto 's points above. Firstly I think it is a phase in which we do need to have a few more calls to find a common direcition and this early phase in the project. At th consortium meeting we did the first part of setting the foundations, but that is only the first step. We now need to tackle the actual content of the research, how we will weave this all in together...and think together really :) Last week we did have the first of the open calls and it was very helpful. We tested a software that was not really up to the job, se we will stick to google hangout from now on. Now for the \"meat\" in the comment:\n\n\n\u00a0\n\n\nYesterday Ezio and I met in London to think together around how to proceed with our part of the research. I had been struggling to understand the distinction Ezio was making the sense in which we are exploring \"Openness\" in the context of care. I\u00a0 think I understand better now, and think I am algined with Ezio, and away from Alberto, that it is the first which is more fruitful\/interesting. For me the openness has to do with more porous interface between what is inside a cateogry or institution or practice, a place..etc and what is outside. And what happens in those situations where there is a fuzzy, or een decomposing boundary between them. Professional caregivers, vs others. Between insiders and outsiders of a community. Between users and builders of technologies.\n\n\n\u00a0\n\n\nLess so the collaborative, participatory nature of our research project. Which for me is given. The very fact that we are having this conversation like this, in the open, with all the difficulties of comprehension that it involves mean that we are already doing this. Seen from here, the conversation we are really trying to have is one of research curation, where to direct our gaze and why. As well as the filter through which we look at it.\n\n\n\u00a0\n\n\nDuring yesterday's conversation Ezio and I reflected on how Europe had reacted to the Paris attacks. How a small number of individuals could shut down two countries for a two days. Similarly it is remarkable that in the world's wealthiest continent, a relatively small number of refugees can destabilise the entire system. Can this\u00a0 be tied to people's sense of being vulnerable, even with nice jobs etc? Can it be there is a sense of lack of social protection because of not being firmly anchored in caring communities?\n \u00a0\n\n\nBut what does this term community actually mean in a contemporary, urban situation? Ezio's work at Central Saint Martins has been exploring this. His students have been looking at weaving together people and places in situations where connections are fleeting and ephemeral (not like in villages where you are stuck with one another in the same place for better or worse). Noemi, Alberto and myself have been working with related things with Edgeryders, creating a sense of place and community that remains even though the relationships which make it (who is there, who interacts with whom, what people connect over etc) are constantly changing. John, before us with other settings and constellations of people. It seems Ezio and I have arrived at the same intuition and this is where his interest in Opencare lies:\u00a0 \n\n\n\u00a0\n\n\nHow can we use design to reconcile this need for the individual to be free to choose their level of engagement in care, with the need for the care recipient to feel continuity, local anchoring and coherence design these factors into existing or new initiatives?\n\n\n\nCan having an option to spread the care over more people nudge more people to engage in caring activities? And if so, under which conditions\u00a0 does this happen or not (which are the critical factors)?\n\n\n\u00a0\n\n\nThere are three situations within which it may be especially generative to focus our research attention:\n\n\nSocial and or health care of refugees in Germany\/Europe\nPrevention of Suicide in the hacker community\nHelping both caregivers and care receivers in dealing with dementia in urban environments\n\n\nThese three areas we choose because they are situations in which the crisis of care in modernity is very\u00a0 visible. I think (please forgive my fumbling approach to articulate intuition into words with my limited understanding of your areas of expertise and interest):\n\n\n\u00a0\n\n\nAll three involve people in vulnerable situations where dynamics in community connections, or lack of, play a significant role. Can Guy\/Alberto's network science perspective help us to make visible and understand these social flows?\nAll three also involve some interaction with the formal health and social care system, conditions as well as norms\/behaviors in society at large. Can Erik and Tino's approach help us make sense of this and translating it into institutionally comprehensible language?\nAll three also involve and require a deep understanding of healing and medical practice, especially the ethical considerations for both caregivers and care recipients. Can Marco, Massimo's and other's work in the field and in the lab help us to identify and understand how to deal with these issues? In the research as well as in the intiatives themselves?\nThe city as a place and institutions is where all of these interactions and relationships live (or do not). Can Lucia and Rossana and others in the city of Milano help us understand how a city can make visible and enable promising approaches and nurturing the people who drive them?\nCan we design interventions offer workarounds to the obstacles these intiatives, and the indivuals they attempt to support (caregivers and care recipients)? What forms could these interventions take in order to unlock more care in the different situations (artefacts, communication, services, processes, upskilling, administrative and legal hacks, policy changes and or something else? Here I think the ingenuity and very particular skillset of Costantino, Zoe and others in the weMake constellation could make a very important contribution.\n\nThoughts?\n","comment_id":"22010","post_id":"6040","user_id":"45","parent_comment_id":"0","creation_date":"Friday, March 18, 2016 - 12:24","group_id":"5954"}},{"node":{"title":"On care and communities: Situations, Relationships, Contexts","content":"\n\nHi everyone,\n\n\n\u00a0\n\n\nI have been thinking and trying to make sense of @Ezio, @LuceChiodelliUB , @Costantino and @Alberto 's points above. Firstly I think it is a phase in which we do need to have a few more calls to find a common direcition and this early phase in the project. At th consortium meeting we did the first part of setting the foundations, but that is only the first step. We now need to tackle the actual content of the research, how we will weave this all in together...and think together really :) Last week we did have the first of the open calls and it was very helpful. We tested a software that was not really up to the job, se we will stick to google hangout from now on. Now for the \"meat\" in the comment:\n\n\n\u00a0\n\n\nYesterday Ezio and I met in London to think together around how to proceed with our part of the research. I had been struggling to understand the distinction Ezio was making the sense in which we are exploring \"Openness\" in the context of care. I\u00a0 think I understand better now, and think I am algined with Ezio, and away from Alberto, that it is the first which is more fruitful\/interesting. For me the openness has to do with more porous interface between what is inside a cateogry or institution or practice, a place..etc and what is outside. And what happens in those situations where there is a fuzzy, or een decomposing boundary between them. Professional caregivers, vs others. Between insiders and outsiders of a community. Between users and builders of technologies.\n\n\n\u00a0\n\n\nLess so the collaborative, participatory nature of our research project. Which for me is given. The very fact that we are having this conversation like this, in the open, with all the difficulties of comprehension that it involves mean that we are already doing this. Seen from here, the conversation we are really trying to have is one of research curation, where to direct our gaze and why. As well as the filter through which we look at it.\n\n\n\u00a0\n\n\nDuring yesterday's conversation Ezio and I reflected on how Europe had reacted to the Paris attacks. How a small number of individuals could shut down two countries for a two days. Similarly it is remarkable that in the world's wealthiest continent, a relatively small number of refugees can destabilise the entire system. Can this\u00a0 be tied to people's sense of being vulnerable, even with nice jobs etc? Can it be there is a sense of lack of social protection because of not being firmly anchored in caring communities?\n \u00a0\n\n\nBut what does this term community actually mean in a contemporary, urban situation? Ezio's work at Central Saint Martins has been exploring this. His students have been looking at weaving together people and places in situations where connections are fleeting and ephemeral (not like in villages where you are stuck with one another in the same place for better or worse). Noemi, Alberto and myself have been working with related things with Edgeryders, creating a sense of place and community that remains even though the relationships which make it (who is there, who interacts with whom, what people connect over etc) are constantly changing. John, before us with other settings and constellations of people. It seems Ezio and I have arrived at the same intuition and this is where his interest in Opencare lies:\u00a0 \n\n\n\u00a0\n\n\nHow can we use design to reconcile this need for the individual to be free to choose their level of engagement in care, with the need for the care recipient to feel continuity, local anchoring and coherence design these factors into existing or new initiatives?\n\n\n\nCan having an option to spread the care over more people nudge more people to engage in caring activities? And if so, under which conditions\u00a0 does this happen or not (which are the critical factors)?\n\n\n\u00a0\n\n\nThere are three situations within which it may be especially generative to focus our research attention:\n\n\nSocial and or health care of refugees in Germany\/Europe\nPrevention of Suicide in the hacker community\nHelping both caregivers and care receivers in dealing with dementia in urban environments\n\n\nThese three areas we choose because they are situations in which the crisis of care in modernity is very\u00a0 visible. I think (please forgive my fumbling approach to articulate intuition into words with my limited understanding of your areas of expertise and interest):\n\n\n\u00a0\n\n\nAll three involve people in vulnerable situations where dynamics in community connections, or lack of, play a significant role. Can Guy\/Alberto's network science perspective help us to make visible and understand these social flows?\nAll three also involve some interaction with the formal health and social care system, conditions as well as norms\/behaviors in society at large. Can Erik and Tino's approach help us make sense of this and translating it into institutionally comprehensible language?\nAll three also involve and require a deep understanding of healing and medical practice, especially the ethical considerations for both caregivers and care recipients. Can Marco, Massimo's and other's work in the field and in the lab help us to identify and understand how to deal with these issues? In the research as well as in the intiatives themselves?\nThe city as a place and institutions is where all of these interactions and relationships live (or do not). Can Lucia and Rossana and others in the city of Milano help us understand how a city can make visible and enable promising approaches and nurturing the people who drive them?\nCan we design interventions offer workarounds to the obstacles these intiatives, and the indivuals they attempt to support (caregivers and care recipients)? What forms could these interventions take in order to unlock more care in the different situations (artefacts, communication, services, processes, upskilling, administrative and legal hacks, policy changes and or something else? Here I think the ingenuity and very particular skillset of Costantino, Zoe and others in the weMake constellation could make a very important contribution.\n\nThoughts?\n","comment_id":"22010","post_id":"6040","user_id":"45","parent_comment_id":"0","creation_date":"Friday, March 18, 2016 - 12:24","group_id":"5954"}},{"node":{"title":"on Facebook you can share this link","content":"\nhttps:\/\/www.facebook.com\/wemake.cc\/posts\/1150451201640742\n","comment_id":"22007","post_id":"6119","user_id":"2604","parent_comment_id":"0","creation_date":"Friday, March 18, 2016 - 10:17","group_id":"5954"}},{"node":{"title":"on Facebook you can share this link","content":"\nhttps:\/\/www.facebook.com\/wemake.cc\/posts\/1150451201640742\n","comment_id":"22007","post_id":"6119","user_id":"2604","parent_comment_id":"0","creation_date":"Friday, March 18, 2016 - 10:17","group_id":"5954"}},{"node":{"title":"Tyze","content":"\nThanks @Ezio_Manzini. I did look up the Canadian case (Tyze). From what I see, it's aimed at professional\u00a0home care providers (hospitals etc.). In practice, if you are a company or public hospital providing home care to someone, you are only a part of the patient's network of support. Other parts include family and possibly friends. There seems to be the idea that many decisions about treatments etc will not be made by the person in need of care (\"client\" in the company website's language), but by others. Perhaps the \"client\" is very old and doctors and professional\u00a0caregivers relate to her children. So, make a social network centered on the \"client\" and bring down the coordination costs of care. Their USP is here:\nHOW TYZE CAN HELP YOUR BUSINESS\n\n\nPushing schedules and daily care documentation into clients\u2019 Tyze networks = Reduced inbound support costs\n \n\nAbility to extend brand to those who share in the care journey of your client = Increased brand awareness\n \n\nDigital delivery of informational and support materials = Reduced printing costs\n \n\nEnhanced communication and care coordination via a Tyze network = Increased customer satisfaction and retention\n \n\nTyze per se is low value added technology. Youy could do the same thing with wikis, Trello, Google Apps and whatever. They have a solid intuition behind it, though, and the people using Tyze, and how they coordinate,\u00a0and who they are etc. could tell many interesting stories to OpenCare.\u00a0\nThe meaning of my statement above are: people\u00a0are already implementing A1 systems\u00a0(they deliver care and they are open) by making A2 stuff (inventing and producing services etc.). We conjecture that openness in the process (2) is an enabler of A1. More precisely, we conjecture that without open processes (B2) there can be no open care (A1), but the reverse is not true.\u00a0You can use open, participatory processes to design closed systems and artifacts. I guess the implication is to study closely the B2 side of things, and how openness in the process results (or not) in A1-type open care.\u00a0\n","comment_id":"22006","post_id":"6040","user_id":"34","parent_comment_id":"22005","creation_date":"Friday, March 18, 2016 - 09:45","group_id":"5954"}},{"node":{"title":"Tyze","content":"\nThanks @Ezio_Manzini. I did look up the Canadian case (Tyze). From what I see, it's aimed at professional\u00a0home care providers (hospitals etc.). In practice, if you are a company or public hospital providing home care to someone, you are only a part of the patient's network of support. Other parts include family and possibly friends. There seems to be the idea that many decisions about treatments etc will not be made by the person in need of care (\"client\" in the company website's language), but by others. Perhaps the \"client\" is very old and doctors and professional\u00a0caregivers relate to her children. So, make a social network centered on the \"client\" and bring down the coordination costs of care. Their USP is here:\nHOW TYZE CAN HELP YOUR BUSINESS\n\n\nPushing schedules and daily care documentation into clients\u2019 Tyze networks = Reduced inbound support costs\n \n\nAbility to extend brand to those who share in the care journey of your client = Increased brand awareness\n \n\nDigital delivery of informational and support materials = Reduced printing costs\n \n\nEnhanced communication and care coordination via a Tyze network = Increased customer satisfaction and retention\n \n\nTyze per se is low value added technology. Youy could do the same thing with wikis, Trello, Google Apps and whatever. They have a solid intuition behind it, though, and the people using Tyze, and how they coordinate,\u00a0and who they are etc. could tell many interesting stories to OpenCare.\u00a0\nThe meaning of my statement above are: people\u00a0are already implementing A1 systems\u00a0(they deliver care and they are open) by making A2 stuff (inventing and producing services etc.). We conjecture that openness in the process (2) is an enabler of A1. More precisely, we conjecture that without open processes (B2) there can be no open care (A1), but the reverse is not true.\u00a0You can use open, participatory processes to design closed systems and artifacts. I guess the implication is to study closely the B2 side of things, and how openness in the process results (or not) in A1-type open care.\u00a0\n","comment_id":"22006","post_id":"6040","user_id":"34","parent_comment_id":"22005","creation_date":"Friday, March 18, 2016 - 09:45","group_id":"5954"}},{"node":{"title":"Care needs proximity and continuity","content":"\nThis is a feedback to @Alberto, @Costantino \u00a0and @Nadia. \u00a0\nThe premise is that for what regards the the structure to be given to the OpenCare (the project). I will accept and respect what Alberto, and if I have well understood Costantino too, propose. That is, in Alberto\u2019s words:\u00a0\u201cWe study people who do A1. They will be the backbone of the OpenCare (the project) community.\u00a0We (the research team) ourselves focus on B2, and hope to learn ways that we can get more A1 stuff out there by showing people how to set their process right. This is why, though A1 is the object of our study, in practice we spend much of our time on B2.\u201d\u00a0I cannot say that the meaning and the practical implications of this statement are crystal clear for me. But in a research it has to be like that. And I am\u00a0curious.\nRegarding Nadia\u2019s first post, I agree with her when she proposes to :\u00a0\u201cHaving this option of spreading the burden of care over more people might be one way to nudge more people to engage in caring activities\u201d\u00a0this is only the strategy I proposed in my post. Maybe there are other strategies, but this one appers to me particularly interesting and potentially generative.\nGiven that, how to go on?\nOn my side, I can make some steps in the direction I know better, i.e. A1, leaving others to help me to find bridges with B1.\u00a0\u00a0If this makes sense, the first step is to ask you, to give me some feedbacks on the other parts of my post above (they went \u00a0the A1 vs\u00a0B2 options!).\u00a0\u00a0I would like to have, if possible, some feedbacks on them too.\nHere I will highlight some one first, and in my view crucial, point. In my original note I wrote:\n\u201cThe practical\/organizational side of care is particularly important because care is not only exchanging information and knowledge. Care asks also for proximity and action: doing something for each other, taking time and being committed.\u201d\nWriting that I want to underline, is that care (by the points of view of who, in a given moment, need care), requires proximity and continuity. These proximity and continuity is, in a my opinion, a major difference with other, mainly information-based activities (that often can work also without them).\nTherefore, if as Nadia also says, a care strategy could be the one of \u201cspreading the burden of care over more people\u201d,\u00a0the first problem that appears is that their different bits of care activity have to be perceived, and by all means, be, from the point of view of who in that moment is the care receiver, as deliveres with continuity: the different care giver must appear as one continuous entity operating in proximity.\nIn my notes I indicated one case that I think could be interesting by this point of view and that I invite you to invite you see: the case of Tyze, in Canada.\nIn my view this case is very interesting but \u2026 it is presented as a private, and therefore, closed, network of care! What do you think?\n","comment_id":"22005","post_id":"6040","user_id":"8347","parent_comment_id":"0","creation_date":"Friday, March 18, 2016 - 09:16","group_id":"5954"}},{"node":{"title":"Care needs proximity and continuity","content":"\nThis is a feedback to @Alberto, @Costantino \u00a0and @Nadia. \u00a0\nThe premise is that for what regards the the structure to be given to the OpenCare (the project). I will accept and respect what Alberto, and if I have well understood Costantino too, propose. That is, in Alberto\u2019s words:\u00a0\u201cWe study people who do A1. They will be the backbone of the OpenCare (the project) community.\u00a0We (the research team) ourselves focus on B2, and hope to learn ways that we can get more A1 stuff out there by showing people how to set their process right. This is why, though A1 is the object of our study, in practice we spend much of our time on B2.\u201d\u00a0I cannot say that the meaning and the practical implications of this statement are crystal clear for me. But in a research it has to be like that. And I am\u00a0curious.\nRegarding Nadia\u2019s first post, I agree with her when she proposes to :\u00a0\u201cHaving this option of spreading the burden of care over more people might be one way to nudge more people to engage in caring activities\u201d\u00a0this is only the strategy I proposed in my post. Maybe there are other strategies, but this one appers to me particularly interesting and potentially generative.\nGiven that, how to go on?\nOn my side, I can make some steps in the direction I know better, i.e. A1, leaving others to help me to find bridges with B1.\u00a0\u00a0If this makes sense, the first step is to ask you, to give me some feedbacks on the other parts of my post above (they went \u00a0the A1 vs\u00a0B2 options!).\u00a0\u00a0I would like to have, if possible, some feedbacks on them too.\nHere I will highlight some one first, and in my view crucial, point. In my original note I wrote:\n\u201cThe practical\/organizational side of care is particularly important because care is not only exchanging information and knowledge. Care asks also for proximity and action: doing something for each other, taking time and being committed.\u201d\nWriting that I want to underline, is that care (by the points of view of who, in a given moment, need care), requires proximity and continuity. These proximity and continuity is, in a my opinion, a major difference with other, mainly information-based activities (that often can work also without them).\nTherefore, if as Nadia also says, a care strategy could be the one of \u201cspreading the burden of care over more people\u201d,\u00a0the first problem that appears is that their different bits of care activity have to be perceived, and by all means, be, from the point of view of who in that moment is the care receiver, as deliveres with continuity: the different care giver must appear as one continuous entity operating in proximity.\nIn my notes I indicated one case that I think could be interesting by this point of view and that I invite you to invite you see: the case of Tyze, in Canada.\nIn my view this case is very interesting but \u2026 it is presented as a private, and therefore, closed, network of care! What do you think?\n","comment_id":"22005","post_id":"6040","user_id":"8347","parent_comment_id":"0","creation_date":"Friday, March 18, 2016 - 09:16","group_id":"5954"}},{"node":{"title":"Yeah","content":"\nI'm more worried about people hacking into my computer. My computer is part of me \/ my brain.\u00a0OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.\nI don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable.\nSo my point is: This IoT security panic is being blown out of proportion. It's nothing new.\nSure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.\n","comment_id":"22004","post_id":"6117","user_id":"5158","parent_comment_id":"0","creation_date":"Thursday, March 17, 2016 - 16:02","group_id":"5954"}},{"node":{"title":"Yeah","content":"\nI'm more worried about people hacking into my computer. My computer is part of me \/ my brain.\u00a0OSs have always been exploitable. The fact that everything is connected to internet all the time makes the problem worse, but not a new thing.\nI don't care so much if they hack my car. What are they gonna do? Make it drive off a cliff? Unlikely. Yeah, sure, it's a bit scary if someone can hack into your pacemaker and switch it off remotely, but how many people are this evil? Not so many. If you wanna be evil and kill people, it's not difficult to get a gun. That's just a fact of life, humans are weak and vulnerable.\nSo my point is: This IoT security panic is being blown out of proportion. It's nothing new.\nSure we will fix it, but it's probably going to take A.I. There is no easy solution. Telling everyone to stop using Microsoft would be a good start, if you care about security.\n","comment_id":"22004","post_id":"6117","user_id":"5158","parent_comment_id":"0","creation_date":"Thursday, March 17, 2016 - 16:02","group_id":"5954"}},{"node":{"title":"On the road","content":"\nPeter thanks for taking the time to post your nots above. Would like to really read and reply to your questions, share reflections etc but am on the road till Sunday. Will post in soon\n","comment_id":"22003","post_id":"6110","user_id":"45","parent_comment_id":"21991","creation_date":"Thursday, March 17, 2016 - 15:51","group_id":"5954"}},{"node":{"title":"On the road","content":"\nPeter thanks for taking the time to post your nots above. Would like to really read and reply to your questions, share reflections etc but am on the road till Sunday. Will post in soon\n","comment_id":"22003","post_id":"6110","user_id":"45","parent_comment_id":"21991","creation_date":"Thursday, March 17, 2016 - 15:51","group_id":"5954"}},{"node":{"title":"When the left gets funded","content":"\n\n","comment_id":"22000","post_id":"6110","user_id":"5158","parent_comment_id":"21991","creation_date":"Wednesday, March 16, 2016 - 18:39","group_id":"5954"}},{"node":{"title":"When the left gets funded","content":"\n\n","comment_id":"22000","post_id":"6110","user_id":"5158","parent_comment_id":"21991","creation_date":"Wednesday, March 16, 2016 - 18:39","group_id":"5954"}},{"node":{"title":"Another location idea","content":"\nEMF is August 5th - 7th 2016,\u00a0Guildford.\u00a0https:\/\/www.emfcamp.org\/\nWe could do something there. @billy-smith @darren\n","comment_id":"21998","post_id":"6110","user_id":"5158","parent_comment_id":"21991","creation_date":"Wednesday, March 16, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"Another location idea","content":"\nEMF is August 5th - 7th 2016,\u00a0Guildford.\u00a0https:\/\/www.emfcamp.org\/\nWe could do something there. @billy-smith @darren\n","comment_id":"21998","post_id":"6110","user_id":"5158","parent_comment_id":"21991","creation_date":"Wednesday, March 16, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"Damn!","content":"\nHi Nadia,\nThat would be amazing, but i think i have to work tonight and tomorrow daytime\u00a0which means i can't do anything. I'm waiting to hear back, in which case i might be able to come down tonight, but it's 50\/50 at the moment.\nI'm busy from early friday morning as i'm going to the wilds of Scotland for a week to write poetry and read EU cultural documents!\nAlex\n","comment_id":"21997","post_id":"6108","user_id":"6559","parent_comment_id":"21988","creation_date":"Wednesday, March 16, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"Damn!","content":"\nHi Nadia,\nThat would be amazing, but i think i have to work tonight and tomorrow daytime\u00a0which means i can't do anything. I'm waiting to hear back, in which case i might be able to come down tonight, but it's 50\/50 at the moment.\nI'm busy from early friday morning as i'm going to the wilds of Scotland for a week to write poetry and read EU cultural documents!\nAlex\n","comment_id":"21997","post_id":"6108","user_id":"6559","parent_comment_id":"21988","creation_date":"Wednesday, March 16, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"Hangout ideas","content":"\nHangout was good. Started in 'appear.in' but it was really laggy so we moved to Google hangouts.\nMy feeling was that I'd be more likely to put effort into the open care thing if I believed it would come up with concrete results (e.g. helping people \/ reducing suffering) , if it was just making a big document that got read and largely ignored, I'd feel it was a waste of time, and I think everyone will share this feeling.\nI think Nadia agreed, and said that we could\/should try to get some concrete change from this project (as well as fulfilling the minimum requirements of providing the research \/ ideas \/ documentation.)\nFor the research part, I thought the only way to actually know what is going on would be to go to places where health care is needed, and talk to people first hand. Get a feel for their situation. (Rather that trusting info sources from others). So I think we could get people to visit anywhere that seems like it might lack good health care and talk to people in need, and the people giving the care. e.g. Refugee camps, impoverished inner city areas where there are too many people and not enough doctors \/ hospitals. Rural areas where it's hard for people to get health care. Go to places, talk to people get first hand accounts, do surveys and get numbers.\nFor stats \/ raw data , I'd want to know:\n* How many doctors\/clinics\/hospitals there are in the area.\n* How the health care is funded: (is it governments paying with taxes? Charities? The communities themselves dealing with the problems, without outside help?)\n* How do people get to the health care when they need it? distance? cost?\n* How long do they have to wait? satisfaction with the care they receive?\n* How many people need care and are not getting it?\netc.\nSomeone (forgot name) asked an important question: Does our client (client?) care about the situation in America, or because it's EU money do they not care about far away places, with maybe completely different situations \/ cultures?\nFor the UK, an important question i would like answered is: 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods \/ efficiency be improved? If so, how? How could they improve? Better software \/ organisation? a change in culture?\n(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)\nTo me, the most exciting idea would be to get hackers involved in health care. Healing people is (often \/ can be) easy when you apply creativity and radical tech and hacker problem solving mentality.\nI think an important question raised was 'is the legal side preventing this from happening more? Or will it get in our way?'\nMaybe hackers are put off operating on people cos they might get sued if it goes wrong? Or 'pretending' to be a dentist is illegal and only people with official training should be allowed to mess with teeth?\n(Issues with stuff like law getting in the way of common sense hacking with pacemakers cos of stupid patent laws \/ lack of open software ?)\nNadia said we can find people with expert legal knowledge, and see what the situation is.\n(Common wisdom is that dentistry is very difficult and takes 7 years training, or whatever. I can see why this makes sense. It *is* very difficult and can get very bad results if it goes wrong, so obviously 'amateurs' should not hack teeth.\nHowever, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky\/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing \/ crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )\nAlso mentioned: hackers making rucksacks for refugees.\nWhat about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.\nThis is not directly health care, but you can argue prevention is better than needing to cure. E.g. if people are living on the streets or extreme poverty where they can't keep warm and dry, and wash, of course they are more like to get sick and have many health problems.\nSo the thing that excites me the most is getting hackers involved in radical change like this.\nNadia said that actually getting positive change was something we could and should be doing (even though technically we don't have to DO anything, just provide research \/ ideas).\nSo she suggested that I could help organise an event in London, where we get hackers together, and see what we can do.\nSo I think a big event with lots of hackers would be good.\nNadia mentioned planing to do something in London, and in June. Not sure why London (just cos I was keen to help, and i know London?) or were you thinking of doing something in London anyway? and why June? dunno. but anyway, that seems feasible.\nThe minimum i would expect from this, is just lots of brainstorming \/ ideas by smart hackers that we can document and add to the report.\nThe best case, would be if something more long term came out of it, and they ended up improving health care in London.\nLondon hackspace would be the logical place to host it (and I know the members and trustees very well).\nSo if you guys think that sounds like it's worth doing, I will contact them and see what they feel and if there is any support \/ excitement about the idea. They would probably allow the space to be used for free, but if we wanted a lot of people and for more than one day, it could be a nice gesture to offer to donate some money from the grant for use of the space. (it's entirely non-profit and run by members) (they did look into charity status, but decided against it)\nNormally it's members only, but they will make exceptions for special events (and a lot of the people interested would be members anyway).\nI know one or two members that are involved in edgeryders, so I would also contact them.\nWhat do you think?\n","comment_id":"21991","post_id":"6110","user_id":"5158","parent_comment_id":"0","creation_date":"Wednesday, March 16, 2016 - 00:45","group_id":"5954"}},{"node":{"title":"Hangout ideas","content":"\nHangout was good. Started in 'appear.in' but it was really laggy so we moved to Google hangouts.\nMy feeling was that I'd be more likely to put effort into the open care thing if I believed it would come up with concrete results (e.g. helping people \/ reducing suffering) , if it was just making a big document that got read and largely ignored, I'd feel it was a waste of time, and I think everyone will share this feeling.\nI think Nadia agreed, and said that we could\/should try to get some concrete change from this project (as well as fulfilling the minimum requirements of providing the research \/ ideas \/ documentation.)\nFor the research part, I thought the only way to actually know what is going on would be to go to places where health care is needed, and talk to people first hand. Get a feel for their situation. (Rather that trusting info sources from others). So I think we could get people to visit anywhere that seems like it might lack good health care and talk to people in need, and the people giving the care. e.g. Refugee camps, impoverished inner city areas where there are too many people and not enough doctors \/ hospitals. Rural areas where it's hard for people to get health care. Go to places, talk to people get first hand accounts, do surveys and get numbers.\nFor stats \/ raw data , I'd want to know:\n* How many doctors\/clinics\/hospitals there are in the area.\n* How the health care is funded: (is it governments paying with taxes? Charities? The communities themselves dealing with the problems, without outside help?)\n* How do people get to the health care when they need it? distance? cost?\n* How long do they have to wait? satisfaction with the care they receive?\n* How many people need care and are not getting it?\netc.\nSomeone (forgot name) asked an important question: Does our client (client?) care about the situation in America, or because it's EU money do they not care about far away places, with maybe completely different situations \/ cultures?\nFor the UK, an important question i would like answered is: 'how good is the NHS?' Are they doing the right thing, and only limited by lack of money, Or could their methods \/ efficiency be improved? If so, how? How could they improve? Better software \/ organisation? a change in culture?\n(I know they wasted a ton of money on software, cos they gave money to some lame suit and tie company instead of getting real hackers that smoke weed. But I guess that's really a separate issue.)\nTo me, the most exciting idea would be to get hackers involved in health care. Healing people is (often \/ can be) easy when you apply creativity and radical tech and hacker problem solving mentality.\nI think an important question raised was 'is the legal side preventing this from happening more? Or will it get in our way?'\nMaybe hackers are put off operating on people cos they might get sued if it goes wrong? Or 'pretending' to be a dentist is illegal and only people with official training should be allowed to mess with teeth?\n(Issues with stuff like law getting in the way of common sense hacking with pacemakers cos of stupid patent laws \/ lack of open software ?)\nNadia said we can find people with expert legal knowledge, and see what the situation is.\n(Common wisdom is that dentistry is very difficult and takes 7 years training, or whatever. I can see why this makes sense. It *is* very difficult and can get very bad results if it goes wrong, so obviously 'amateurs' should not hack teeth.\nHowever, I actually think this is not as obvious as some may think. When talking about starting a radical hacker community on an island, one of the points that came up, is can we really mange without any outside help? What if someone has tooth problems, should we consider this when deciding on location? I said 'we can't do dentistry, it's too hard' but some in our crew actually thought it was not beyond the realms of possibility. He would have to spend a few hours reading, and time making specialised equipment (drills, maybe X-ray machine, etc) and make our own morphine (actually that's the easy bit, but general anaesthetic can be tricky\/dangerous). So anyway, I'm not suggesting it will be common place in the near future for people to get their teeth fixed at hackerspaces. Just wanted to point our that genius hackers can do amazing \/ crazy high tech things if they have the time. Nothing is beyond us. So I imagine it could be very feasible for hackers to help with more simple aspects of health care, and there is no reason that they should not be allowed to do so. )\nAlso mentioned: hackers making rucksacks for refugees.\nWhat about shelters for homeless? I've always been keen on squatting, using tech knowhow to get abandoned buildings into liveable states.\nThis is not directly health care, but you can argue prevention is better than needing to cure. E.g. if people are living on the streets or extreme poverty where they can't keep warm and dry, and wash, of course they are more like to get sick and have many health problems.\nSo the thing that excites me the most is getting hackers involved in radical change like this.\nNadia said that actually getting positive change was something we could and should be doing (even though technically we don't have to DO anything, just provide research \/ ideas).\nSo she suggested that I could help organise an event in London, where we get hackers together, and see what we can do.\nSo I think a big event with lots of hackers would be good.\nNadia mentioned planing to do something in London, and in June. Not sure why London (just cos I was keen to help, and i know London?) or were you thinking of doing something in London anyway? and why June? dunno. but anyway, that seems feasible.\nThe minimum i would expect from this, is just lots of brainstorming \/ ideas by smart hackers that we can document and add to the report.\nThe best case, would be if something more long term came out of it, and they ended up improving health care in London.\nLondon hackspace would be the logical place to host it (and I know the members and trustees very well).\nSo if you guys think that sounds like it's worth doing, I will contact them and see what they feel and if there is any support \/ excitement about the idea. They would probably allow the space to be used for free, but if we wanted a lot of people and for more than one day, it could be a nice gesture to offer to donate some money from the grant for use of the space. (it's entirely non-profit and run by members) (they did look into charity status, but decided against it)\nNormally it's members only, but they will make exceptions for special events (and a lot of the people interested would be members anyway).\nI know one or two members that are involved in edgeryders, so I would also contact them.\nWhat do you think?\n","comment_id":"21991","post_id":"6110","user_id":"5158","parent_comment_id":"0","creation_date":"Wednesday, March 16, 2016 - 00:45","group_id":"5954"}},{"node":{"title":"Are they in the UK?","content":"\nHiyah Alex,\nwas just writing up my notes from the call and saw this. I'm going to be in London from tomorrow through to Sunday.\n1) there's a dinner Im hosting (Ezio will be there as well) if you you'd like to join us. I've rented an airbnb so if you need a place to crash you're welcome to stay there too\n2) I'd love to meet them, with you also if you have time? I've no problem getting to where they are and if you'd like to join me that would be even better :)\nLet me know?\n","comment_id":"21988","post_id":"6108","user_id":"45","parent_comment_id":"21983","creation_date":"Tuesday, March 15, 2016 - 20:42","group_id":"5954"}},{"node":{"title":"Are they in the UK?","content":"\nHiyah Alex,\nwas just writing up my notes from the call and saw this. I'm going to be in London from tomorrow through to Sunday.\n1) there's a dinner Im hosting (Ezio will be there as well) if you you'd like to join us. I've rented an airbnb so if you need a place to crash you're welcome to stay there too\n2) I'd love to meet them, with you also if you have time? I've no problem getting to where they are and if you'd like to join me that would be even better :)\nLet me know?\n","comment_id":"21988","post_id":"6108","user_id":"45","parent_comment_id":"21983","creation_date":"Tuesday, March 15, 2016 - 20:42","group_id":"5954"}},{"node":{"title":"it was a very good documentary","content":"\nHi John,\nI watched it when it was on TV in the UK. It was very powerful and interesting, certainly worth following up with them.\nThe link to watch it through the UK BBC iPlayer service is here:\u00a0http:\/\/www.bbc.co.uk\/programmes\/b073jh6b\u00a0\nI think it's only available to UK IP addresses, but i'm sure that won't hold you back, a simple VPN will get past that.\nYou can also follow the link and buy it as a video download for about $2\/2Euro if you're feeling generous.\nIt s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.\nIf you wanted to organise a meeting or discussion with them i'd be happy to act as an intermediary, or scribe so we could share with the rest of the community.\nAlex\n","comment_id":"21983","post_id":"6108","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, March 15, 2016 - 19:06","group_id":"5954"}},{"node":{"title":"it was a very good documentary","content":"\nHi John,\nI watched it when it was on TV in the UK. It was very powerful and interesting, certainly worth following up with them.\nThe link to watch it through the UK BBC iPlayer service is here:\u00a0http:\/\/www.bbc.co.uk\/programmes\/b073jh6b\u00a0\nI think it's only available to UK IP addresses, but i'm sure that won't hold you back, a simple VPN will get past that.\nYou can also follow the link and buy it as a video download for about $2\/2Euro if you're feeling generous.\nIt s a couple of months old (they did their journey at the beginning of the year) so they visited the Calais camp which is now very different and in the process of being forcibly cleared by French Police and government officials. Sadly this will just mean that it's even more difficult to treat and assess the conditions of the refugees as they are most dispersed around the area and the clinic and social services that had been set up by volunteers and 3rd Sector orgs have been dismantled and closed.\nIf you wanted to organise a meeting or discussion with them i'd be happy to act as an intermediary, or scribe so we could share with the rest of the community.\nAlex\n","comment_id":"21983","post_id":"6108","user_id":"6559","parent_comment_id":"0","creation_date":"Tuesday, March 15, 2016 - 19:06","group_id":"5954"}},{"node":{"title":"Me, I'm a content freak","content":"\nI would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care\u00a0priorities in a whole different light. Or the layers you mention (\"opinion\" \"contradict\" etc). But if you have an ethnographer analysing the more in-depth\u00a0conversation, isn't that\u00a0covered?\u00a0@jimmytidey is involved in\u00a0mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes?\u00a0http:\/\/localnets.org\/\n","comment_id":"21939","post_id":"6086","user_id":"32","parent_comment_id":"21937","creation_date":"Friday, March 11, 2016 - 11:51","group_id":"5954"}},{"node":{"title":"Me, I'm a content freak","content":"\nI would potentially find it useful only if it can complement the semantic analysis - so on top of us finding what concepts are related and talked about most, we also have a map of feelings around those concepts that puts care\u00a0priorities in a whole different light. Or the layers you mention (\"opinion\" \"contradict\" etc). But if you have an ethnographer analysing the more in-depth\u00a0conversation, isn't that\u00a0covered?\u00a0@jimmytidey is involved in\u00a0mapping tweets in online consultation processes, maybe he has some insights for how insightful twitter conversations can be for research purposes?\u00a0http:\/\/localnets.org\/\n","comment_id":"21939","post_id":"6086","user_id":"32","parent_comment_id":"21937","creation_date":"Friday, March 11, 2016 - 11:51","group_id":"5954"}},{"node":{"title":"Hi Nadia,","content":"\nHi Nadia,\nwe will update you after the event! We have sent the promotional flyer (the one at\u00a0the beginning of the post) to all the places heavily visited by elderly people.\nFor next events, we will use the same strategy with the other social groups: families, immigrants etc.\n","comment_id":"21938","post_id":"6078","user_id":"8541","parent_comment_id":"21883","creation_date":"Friday, March 11, 2016 - 10:47","group_id":"5954"}},{"node":{"title":"Hi Nadia,","content":"\nHi Nadia,\nwe will update you after the event! We have sent the promotional flyer (the one at\u00a0the beginning of the post) to all the places heavily visited by elderly people.\nFor next events, we will use the same strategy with the other social groups: families, immigrants etc.\n","comment_id":"21938","post_id":"6078","user_id":"8541","parent_comment_id":"21883","creation_date":"Friday, March 11, 2016 - 10:47","group_id":"5954"}},{"node":{"title":"When sentiment analysis hits the fan","content":"\n@Alberto @MassimoMercuri\u00a0[Je n'ai pas r\u00e9sist\u00e9 \u00e0 faire ce mauvais jeu de mots ...]\nMy guess is you don't see value in sentiment analysis because up to now you have been able to track almots every and each of the users, and probably every and each post\/comment on edgeryders.eu -- this is no surpirse, it's your job as a community manager!\nWhat if the community grows, what if the volume of excange makes it so that you cannot afford to track each individual or post?\nMaybe \"sentiment\" is not the good way of thinking about how to use this technology. And maybe, it's true, sentiment coloring is not that useful.\nLet's give it a second chance.\n- What if, on top of the topics that people discuss, I can tag some posts\/comments as being \"opinions\", \"knowledge sharing\", \"second\", \"contradict\", etc.?\n\u00a0\n","comment_id":"21937","post_id":"6086","user_id":"6399","parent_comment_id":"21934","creation_date":"Friday, March 11, 2016 - 10:17","group_id":"5954"}},{"node":{"title":"When sentiment analysis hits the fan","content":"\n@Alberto @MassimoMercuri\u00a0[Je n'ai pas r\u00e9sist\u00e9 \u00e0 faire ce mauvais jeu de mots ...]\nMy guess is you don't see value in sentiment analysis because up to now you have been able to track almots every and each of the users, and probably every and each post\/comment on edgeryders.eu -- this is no surpirse, it's your job as a community manager!\nWhat if the community grows, what if the volume of excange makes it so that you cannot afford to track each individual or post?\nMaybe \"sentiment\" is not the good way of thinking about how to use this technology. And maybe, it's true, sentiment coloring is not that useful.\nLet's give it a second chance.\n- What if, on top of the topics that people discuss, I can tag some posts\/comments as being \"opinions\", \"knowledge sharing\", \"second\", \"contradict\", etc.?\n\u00a0\n","comment_id":"21937","post_id":"6086","user_id":"6399","parent_comment_id":"21934","creation_date":"Friday, March 11, 2016 - 10:17","group_id":"5954"}},{"node":{"title":"Not for me","content":"\nI am no fan of sentiment analysis.\u00a0\nI tried with several words (\"edgeryders\", \"edgeryders OR opencare\", \"stewardship\", but I can't seem to learn anything of substance.\u00a0\nHope that was not too disappointing, @melancon...\n","comment_id":"21934","post_id":"6086","user_id":"34","parent_comment_id":"0","creation_date":"Friday, March 11, 2016 - 00:46","group_id":"5954"}},{"node":{"title":"Not for me","content":"\nI am no fan of sentiment analysis.\u00a0\nI tried with several words (\"edgeryders\", \"edgeryders OR opencare\", \"stewardship\", but I can't seem to learn anything of substance.\u00a0\nHope that was not too disappointing, @melancon...\n","comment_id":"21934","post_id":"6086","user_id":"34","parent_comment_id":"0","creation_date":"Friday, March 11, 2016 - 00:46","group_id":"5954"}},{"node":{"title":"Include a customised offer into the fellowship package?","content":"\nSee discussion here? https:\/\/edgeryders.eu\/en\/opencare\/fellowship-program-timeline-and-rewards-each-partner-can\n","comment_id":"21923","post_id":"6086","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, March 10, 2016 - 18:26","group_id":"5954"}},{"node":{"title":"Include a customised offer into the fellowship package?","content":"\nSee discussion here? https:\/\/edgeryders.eu\/en\/opencare\/fellowship-program-timeline-and-rewards-each-partner-can\n","comment_id":"21923","post_id":"6086","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, March 10, 2016 - 18:26","group_id":"5954"}},{"node":{"title":"Be sentimental","content":"\nOpen your heart.\nImagine you read posts, you are trying to understand what is going on in the Op3nCare crowd, maybe looking how newcomers are doing, maybe looking for places where lively debates take (took) place.\nHow does the sentiment scale used in the demo serves your search? How would you go from the sentiment map to the data you are looking for?\nCome on guys, be generous, tell me all -- I need it to fuel WP5. Thanks!\n\u00a0\n","comment_id":"21922","post_id":"6086","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, March 10, 2016 - 17:56","group_id":"5954"}},{"node":{"title":"Be sentimental","content":"\nOpen your heart.\nImagine you read posts, you are trying to understand what is going on in the Op3nCare crowd, maybe looking how newcomers are doing, maybe looking for places where lively debates take (took) place.\nHow does the sentiment scale used in the demo serves your search? How would you go from the sentiment map to the data you are looking for?\nCome on guys, be generous, tell me all -- I need it to fuel WP5. Thanks!\n\u00a0\n","comment_id":"21922","post_id":"6086","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, March 10, 2016 - 17:56","group_id":"5954"}},{"node":{"title":"Liscio Ambrosiano with Claudio Merli ","content":"Claudio will be our rockstar!!\n\n\n","comment_id":"21917","post_id":"6078","user_id":"2604","parent_comment_id":"0","creation_date":"Thursday, March 10, 2016 - 10:04","group_id":"5954"}},{"node":{"title":"Liscio Ambrosiano with Claudio Merli ","content":"Claudio will be our rockstar!!\n\n\n","comment_id":"21917","post_id":"6078","user_id":"2604","parent_comment_id":"0","creation_date":"Thursday, March 10, 2016 - 10:04","group_id":"5954"}},{"node":{"title":"Great job!","content":"\nYou guys in Milano rock. Well done! \u00a0\n","comment_id":"21907","post_id":"6077","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 18:50","group_id":"5954"}},{"node":{"title":"Great job!","content":"\nYou guys in Milano rock. Well done! \u00a0\n","comment_id":"21907","post_id":"6077","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 18:50","group_id":"5954"}},{"node":{"title":"WeMake Slides - Press Conference @Comune di Milano - March 9th","content":"\n\n\n\n\n\nOpencare press conference - Comune di Milano & WeMake   from WeMake | fablab makerspace\n\n","comment_id":"21903","post_id":"6077","user_id":"8307","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 17:18","group_id":"5954"}},{"node":{"title":"WeMake Slides - Press Conference @Comune di Milano - March 9th","content":"\n\n\n\n\n\nOpencare press conference - Comune di Milano & WeMake   from WeMake | fablab makerspace\n\n","comment_id":"21903","post_id":"6077","user_id":"8307","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 17:18","group_id":"5954"}},{"node":{"title":"Pics","content":"\nHi!\u00a0\nA couple of pics from today's press conference!\nhttps:\/\/www.flickr.com\/photos\/wemake_cc\/albums\/72157665517816471\nBetty\n","comment_id":"21898","post_id":"6077","user_id":"8307","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 16:04","group_id":"5954"}},{"node":{"title":"Pics","content":"\nHi!\u00a0\nA couple of pics from today's press conference!\nhttps:\/\/www.flickr.com\/photos\/wemake_cc\/albums\/72157665517816471\nBetty\n","comment_id":"21898","post_id":"6077","user_id":"8307","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 16:04","group_id":"5954"}},{"node":{"title":"My bad - here is another link","content":"\nHi @Betty Gorf !\nSorry for the bad link - You can get the whole EC package of logos in JPEG format from here:\u00a0http:\/\/ec.europa.eu\/dgs\/communication\/services\/visual_identity\/img\/standard\/standard-pos-jpg-high-all.zip\nSource:\u00a0http:\/\/ec.europa.eu\/dgs\/communication\/services\/visual_identity\/index_en.htm\n","comment_id":"21897","post_id":"6077","user_id":"8382","parent_comment_id":"21896","creation_date":"Wednesday, March 9, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"My bad - here is another link","content":"\nHi @Betty Gorf !\nSorry for the bad link - You can get the whole EC package of logos in JPEG format from here:\u00a0http:\/\/ec.europa.eu\/dgs\/communication\/services\/visual_identity\/img\/standard\/standard-pos-jpg-high-all.zip\nSource:\u00a0http:\/\/ec.europa.eu\/dgs\/communication\/services\/visual_identity\/index_en.htm\n","comment_id":"21897","post_id":"6077","user_id":"8382","parent_comment_id":"21896","creation_date":"Wednesday, March 9, 2016 - 15:39","group_id":"5954"}},{"node":{"title":"Link to the logo","content":"\nHi @LuceChiodelliUB!\nCan you check the link to\u00a0the logo? It's not working\u00a0:-(\nThank you!\u00a0\n","comment_id":"21896","post_id":"6077","user_id":"8307","parent_comment_id":"21884","creation_date":"Wednesday, March 9, 2016 - 15:30","group_id":"5954"}},{"node":{"title":"Link to the logo","content":"\nHi @LuceChiodelliUB!\nCan you check the link to\u00a0the logo? It's not working\u00a0:-(\nThank you!\u00a0\n","comment_id":"21896","post_id":"6077","user_id":"8307","parent_comment_id":"21884","creation_date":"Wednesday, March 9, 2016 - 15:30","group_id":"5954"}},{"node":{"title":"Great promotional gif","content":"\nLoved it and added it to our visual repository in the google drive.\n\n\u00a0\n\u00a0\n","comment_id":"21892","post_id":"6078","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 12:43","group_id":"5954"}},{"node":{"title":"Great promotional gif","content":"\nLoved it and added it to our visual repository in the google drive.\n\n\u00a0\n\u00a0\n","comment_id":"21892","post_id":"6078","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 12:43","group_id":"5954"}},{"node":{"title":"Great idea, thanks !","content":"\nGreat idea, thanks !\nI could also lend you a hand with this - just let me know :)\n\u00a0\n","comment_id":"21887","post_id":"6077","user_id":"8382","parent_comment_id":"21886","creation_date":"Wednesday, March 9, 2016 - 11:29","group_id":"5954"}},{"node":{"title":"Great idea, thanks !","content":"\nGreat idea, thanks !\nI could also lend you a hand with this - just let me know :)\n\u00a0\n","comment_id":"21887","post_id":"6077","user_id":"8382","parent_comment_id":"21886","creation_date":"Wednesday, March 9, 2016 - 11:29","group_id":"5954"}},{"node":{"title":"Helpful info","content":"\nI'm preparing some template slides with standardised information about the project where people can then add their own content for their public presentations. So we all know we're \"safe\" in terms of fullfilling grant agreement requirement for comms while still enabling decentralised workflow :))\n","comment_id":"21886","post_id":"6077","user_id":"45","parent_comment_id":"21884","creation_date":"Wednesday, March 9, 2016 - 11:26","group_id":"5954"}},{"node":{"title":"Helpful info","content":"\nI'm preparing some template slides with standardised information about the project where people can then add their own content for their public presentations. So we all know we're \"safe\" in terms of fullfilling grant agreement requirement for comms while still enabling decentralised workflow :))\n","comment_id":"21886","post_id":"6077","user_id":"45","parent_comment_id":"21884","creation_date":"Wednesday, March 9, 2016 - 11:26","group_id":"5954"}},{"node":{"title":"Hi Alberto,\u00a0","content":"\nHi Alberto,\u00a0\nGreat presentation !\nI would like to point at\u00a0just one tiny detail - Could you please\u00a0add in your presentation (maybe at the end?) the following information?\n-\u00a0European Commission logo (available here:\u00a0https:\/\/drive.google.com\/open?id=0BxnwAmGNB9t9N2x0UE9ZeUx5eVE)\u00a0\n- The project\u00a0credits : \"This project has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 688670.\"\nAll partners within the project\u00a0are compelled by the European Commission\u00a0to display them on every communication related to the project.\nThank you !\nLuce\n","comment_id":"21884","post_id":"6077","user_id":"8382","parent_comment_id":"21879","creation_date":"Wednesday, March 9, 2016 - 10:30","group_id":"5954"}},{"node":{"title":"Hi Alberto,\u00a0","content":"\nHi Alberto,\u00a0\nGreat presentation !\nI would like to point at\u00a0just one tiny detail - Could you please\u00a0add in your presentation (maybe at the end?) the following information?\n-\u00a0European Commission logo (available here:\u00a0https:\/\/drive.google.com\/open?id=0BxnwAmGNB9t9N2x0UE9ZeUx5eVE)\u00a0\n- The project\u00a0credits : \"This project has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 688670.\"\nAll partners within the project\u00a0are compelled by the European Commission\u00a0to display them on every communication related to the project.\nThank you !\nLuce\n","comment_id":"21884","post_id":"6077","user_id":"8382","parent_comment_id":"21879","creation_date":"Wednesday, March 9, 2016 - 10:30","group_id":"5954"}},{"node":{"title":"Photos or it didn't happen :))","content":"\nKidding aside. Very curious how you are structuring this event, what communication materials you have sent to whom and then what people actually say\/do during the event.\nThe reason being that if we can learn from one another, then we can help others maybe do the same workshops\/event where they are based....\n","comment_id":"21883","post_id":"6078","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 10:28","group_id":"5954"}},{"node":{"title":"Photos or it didn't happen :))","content":"\nKidding aside. Very curious how you are structuring this event, what communication materials you have sent to whom and then what people actually say\/do during the event.\nThe reason being that if we can learn from one another, then we can help others maybe do the same workshops\/event where they are based....\n","comment_id":"21883","post_id":"6078","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 10:28","group_id":"5954"}},{"node":{"title":"Small correction","content":"\nCiao Alberto,\nthanks for sharing the slides. Due cose. Edgryders ha piu di 3000 members. E poi e intergenerazionale, non solo giovane :)\n","comment_id":"21881","post_id":"6077","user_id":"45","parent_comment_id":"21879","creation_date":"Wednesday, March 9, 2016 - 10:11","group_id":"5954"}},{"node":{"title":"Small correction","content":"\nCiao Alberto,\nthanks for sharing the slides. Due cose. Edgryders ha piu di 3000 members. E poi e intergenerazionale, non solo giovane :)\n","comment_id":"21881","post_id":"6077","user_id":"45","parent_comment_id":"21879","creation_date":"Wednesday, March 9, 2016 - 10:11","group_id":"5954"}},{"node":{"title":"Ok tweeted about this","content":"\nLooking forward to hearing what happened, especially how you guys introduced the project (got slides or presentation notes?) and which questions people asked!\n","comment_id":"21880","post_id":"6077","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 10:06","group_id":"5954"}},{"node":{"title":"Ok tweeted about this","content":"\nLooking forward to hearing what happened, especially how you guys introduced the project (got slides or presentation notes?) and which questions people asked!\n","comment_id":"21880","post_id":"6077","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 10:06","group_id":"5954"}},{"node":{"title":"Slide presentation - Palazzo Marino, March 9th, 2016","content":"\nGoodmorning everybody,\nas introduced by @zoescope ,\u00a0today we will present the project\u00a0at Palazzo Marino. Here the link to our short slide presentation:\nhttps:\/\/docs.google.com\/presentation\/d\/1Lrq3bHZR2WKeZ1vAYl7iCKWnr_P9650xr35EFLbUXvg\/edit?usp=sharing\nmore updates soon!\nAlberto\n","comment_id":"21879","post_id":"6077","user_id":"8541","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 09:48","group_id":"5954"}},{"node":{"title":"Slide presentation - Palazzo Marino, March 9th, 2016","content":"\nGoodmorning everybody,\nas introduced by @zoescope ,\u00a0today we will present the project\u00a0at Palazzo Marino. Here the link to our short slide presentation:\nhttps:\/\/docs.google.com\/presentation\/d\/1Lrq3bHZR2WKeZ1vAYl7iCKWnr_P9650xr35EFLbUXvg\/edit?usp=sharing\nmore updates soon!\nAlberto\n","comment_id":"21879","post_id":"6077","user_id":"8541","parent_comment_id":"0","creation_date":"Wednesday, March 9, 2016 - 09:48","group_id":"5954"}},{"node":{"title":"Tried to expand\/think more around this in a post","content":"\nHi :)\nDuring the\u00a0 Op3nCare community call today (tuesdays at 16.30 CET), we discussed how to structure the Op3nCare outreach so as to create the conditions for mutual learning and shared insights relevant to everyone involved.\nIt could be that they are currently in a care-related situation themselves (as caregiver\/reciever)...\n...or someone who is not directly affected but cares, and wants to support their efforts in navigating the situation.\nIt could also just be someone who is professionally engaged and wants to know how they can make a meaningful contribution.\nI wrote the comment above more as a mental note to not forget something ephemeral, a beginning of a thought really. A bit later I wrote a more reflective post where I try to start digging into it.. https:\/\/edgeryders.eu\/en\/lote5-doc\/after-lote5-where-do-we-even-begin-to-talk-about-failures-in\n\u00a0\n","comment_id":"21862","post_id":"6040","user_id":"45","parent_comment_id":"21861","creation_date":"Tuesday, March 8, 2016 - 20:17","group_id":"5954"}},{"node":{"title":"Tried to expand\/think more around this in a post","content":"\nHi :)\nDuring the\u00a0 Op3nCare community call today (tuesdays at 16.30 CET), we discussed how to structure the Op3nCare outreach so as to create the conditions for mutual learning and shared insights relevant to everyone involved.\nIt could be that they are currently in a care-related situation themselves (as caregiver\/reciever)...\n...or someone who is not directly affected but cares, and wants to support their efforts in navigating the situation.\nIt could also just be someone who is professionally engaged and wants to know how they can make a meaningful contribution.\nI wrote the comment above more as a mental note to not forget something ephemeral, a beginning of a thought really. A bit later I wrote a more reflective post where I try to start digging into it.. https:\/\/edgeryders.eu\/en\/lote5-doc\/after-lote5-where-do-we-even-begin-to-talk-about-failures-in\n\u00a0\n","comment_id":"21862","post_id":"6040","user_id":"45","parent_comment_id":"21861","creation_date":"Tuesday, March 8, 2016 - 20:17","group_id":"5954"}},{"node":{"title":"interesting cases","content":"\nHello Nadia,\nthank you for your contribution.\u00a0 Any clear idea of what is intended with the case-studies?\u00a0 What would you like to do around these three examples?\nThey appear to be interesting but I feel the urge of going deeper with them.\u00a0 looking forward to the way ahead...\n\u00a0\n","comment_id":"21861","post_id":"6040","user_id":"8471","parent_comment_id":"21818","creation_date":"Tuesday, March 8, 2016 - 19:54","group_id":"5954"}},{"node":{"title":"interesting cases","content":"\nHello Nadia,\nthank you for your contribution.\u00a0 Any clear idea of what is intended with the case-studies?\u00a0 What would you like to do around these three examples?\nThey appear to be interesting but I feel the urge of going deeper with them.\u00a0 looking forward to the way ahead...\n\u00a0\n","comment_id":"21861","post_id":"6040","user_id":"8471","parent_comment_id":"21818","creation_date":"Tuesday, March 8, 2016 - 19:54","group_id":"5954"}},{"node":{"title":"we're working on this","content":"\n@guy\u00a0instead of giving here an impromptu\u00a0example we're approaching these in a little more structured way. Just wait a little bit! \u00a0;)\u00a0\n\u00a0\n\u00a0\n","comment_id":"21855","post_id":"6040","user_id":"2604","parent_comment_id":"21825","creation_date":"Tuesday, March 8, 2016 - 18:24","group_id":"5954"}},{"node":{"title":"we're working on this","content":"\n@guy\u00a0instead of giving here an impromptu\u00a0example we're approaching these in a little more structured way. Just wait a little bit! \u00a0;)\u00a0\n\u00a0\n\u00a0\n","comment_id":"21855","post_id":"6040","user_id":"2604","parent_comment_id":"21825","creation_date":"Tuesday, March 8, 2016 - 18:24","group_id":"5954"}},{"node":{"title":"yes that session was quite impressive","content":"\n!!\n","comment_id":"21838","post_id":"6049","user_id":"2604","parent_comment_id":"0","creation_date":"Sunday, March 6, 2016 - 20:35","group_id":"5954"}},{"node":{"title":"yes that session was quite impressive","content":"\n!!\n","comment_id":"21838","post_id":"6049","user_id":"2604","parent_comment_id":"0","creation_date":"Sunday, March 6, 2016 - 20:35","group_id":"5954"}},{"node":{"title":"yes that session was quite impressive","content":"\n!!\n","comment_id":"21838","post_id":"6049","user_id":"2604","parent_comment_id":"0","creation_date":"Sunday, March 6, 2016 - 20:35","group_id":"5954"}},{"node":{"title":"Impressive! ","content":"\nEither Lorenzo has a very clutter-free brain or you took great notes. Or both. Either way, this is really insightful.\u00a0\n","comment_id":"21831","post_id":"6049","user_id":"34","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 19:04","group_id":"5954"}},{"node":{"title":"Impressive! ","content":"\nEither Lorenzo has a very clutter-free brain or you took great notes. Or both. Either way, this is really insightful.\u00a0\n","comment_id":"21831","post_id":"6049","user_id":"34","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 19:04","group_id":"5954"}},{"node":{"title":"Impressive! ","content":"\nEither Lorenzo has a very clutter-free brain or you took great notes. Or both. Either way, this is really insightful.\u00a0\n","comment_id":"21831","post_id":"6049","user_id":"34","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 19:04","group_id":"5954"}},{"node":{"title":"This was a surprisingly effective approach","content":"\nI had used the 3-person 'storytelling' approach before (possibly at another LOTE?) but I really found it effective here. Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection. So this was a nice chance to gradually eke out insights from our collective experience, we started on a relatively basic level and then by the end we had covered a lot of ground, a sense of trust and intimacy was developed we got into some very interesting questions (and answers!)\nHere are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.\n\n\u00a0\n","comment_id":"21829","post_id":"6049","user_id":"1128","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 15:47","group_id":"5954"}},{"node":{"title":"This was a surprisingly effective approach","content":"\nI had used the 3-person 'storytelling' approach before (possibly at another LOTE?) but I really found it effective here. Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection. So this was a nice chance to gradually eke out insights from our collective experience, we started on a relatively basic level and then by the end we had covered a lot of ground, a sense of trust and intimacy was developed we got into some very interesting questions (and answers!)\nHere are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.\n\n\u00a0\n","comment_id":"21829","post_id":"6049","user_id":"1128","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 15:47","group_id":"5954"}},{"node":{"title":"This was a surprisingly effective approach","content":"\nI had used the 3-person 'storytelling' approach before (possibly at another LOTE?) but I really found it effective here. Maybe because our current societal view of care can at times be very practical and mechanical: you take a symptom to a professional, and procedure or medication is applied... There's not often much chance for deep reflection. So this was a nice chance to gradually eke out insights from our collective experience, we started on a relatively basic level and then by the end we had covered a lot of ground, a sense of trust and intimacy was developed we got into some very interesting questions (and answers!)\nHere are my notes from the first interview, with Constantino asking Lorenzo about his experiences with care.\n\n\u00a0\n","comment_id":"21829","post_id":"6049","user_id":"1128","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 15:47","group_id":"5954"}},{"node":{"title":"Examples?","content":"\nI'm sorry, I'm afraid I'm the dummy guy in the gang. I need @Costantino to provide examples of what you put behind these classes:\u00a0material \/ immaterial;\u00a0simple \/ complex,\u00a0low impact \/ high impact;\u00a0low growth rate \/ high growth rate. Or is it the\u00a0classification itself you wish to discuss?\n\u00a0\n","comment_id":"21825","post_id":"6040","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 14:21","group_id":"5954"}},{"node":{"title":"Examples?","content":"\nI'm sorry, I'm afraid I'm the dummy guy in the gang. I need @Costantino to provide examples of what you put behind these classes:\u00a0material \/ immaterial;\u00a0simple \/ complex,\u00a0low impact \/ high impact;\u00a0low growth rate \/ high growth rate. Or is it the\u00a0classification itself you wish to discuss?\n\u00a0\n","comment_id":"21825","post_id":"6040","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 14:21","group_id":"5954"}},{"node":{"title":"Three possible situations","content":"\nDuring LOTE5 some of us had a parallel discussion around narratives of care. We started with small listening triads where participants shared personal experiences around care. Then we had a larger free-wheeling conversation where more people got involved, including Erik.\nSome observations\nOne conclusion (as I understand it) is that there are a lot of difficulties involved in setting the context for care. How to communicate and negotiate around the different needs, capacities, permission\/willingness to get involved and constraints of both caregivers and care recipients. In part because the boundaries between the roles are fluid, especially in trying to deal with psycho-social distress involved. From a conversation that took place after LOTE5 someone mentioned \"learned helplessness\" and how to cope with this as a caregiver.\nCoping mechanisms: Networked care\nSomeone mentioned one coping mechanism being to require the person asking for help to spread the burden by reaching out to more people in their caring network. I mention it because I think this is something we could look into: how a network can help the individual nodes both identify signs of trouble, collude to preventing them from happening, as well as identify and respond to calls for help. Having this option of spreading the burden of care over more people might be one way to nudge more people to engage in caring activities. This is certainly the case for me: the fear of getting entangled in relationships that I cannot get out of is a big obstacle.\nThree possible situations\nI found three possible cases around which we could perhaps better map\/make sense of different kinds of caring activities involved.\nPossibly with the intention to co-design and prototype appropriate practical\/organisational settings\/resources\/artefacts to support care givers\/recipients...\n\u00a0\nCase 1: Preventing suicides in the hacker community.\nCase 2: Negotiating changing roles and needs (emotional and practical) of family members as parents slip into dementia. needs, capacities, and constraints where elderly family members are slipping into dementia\nCase 3: Helping refugees deal with emotional \/psychological\/ social challenges during the \"waiting\" phases in the asylum seeking process\n","comment_id":"21818","post_id":"6040","user_id":"45","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 10:52","group_id":"5954"}},{"node":{"title":"Three possible situations","content":"\nDuring LOTE5 some of us had a parallel discussion around narratives of care. We started with small listening triads where participants shared personal experiences around care. Then we had a larger free-wheeling conversation where more people got involved, including Erik.\nSome observations\nOne conclusion (as I understand it) is that there are a lot of difficulties involved in setting the context for care. How to communicate and negotiate around the different needs, capacities, permission\/willingness to get involved and constraints of both caregivers and care recipients. In part because the boundaries between the roles are fluid, especially in trying to deal with psycho-social distress involved. From a conversation that took place after LOTE5 someone mentioned \"learned helplessness\" and how to cope with this as a caregiver.\nCoping mechanisms: Networked care\nSomeone mentioned one coping mechanism being to require the person asking for help to spread the burden by reaching out to more people in their caring network. I mention it because I think this is something we could look into: how a network can help the individual nodes both identify signs of trouble, collude to preventing them from happening, as well as identify and respond to calls for help. Having this option of spreading the burden of care over more people might be one way to nudge more people to engage in caring activities. This is certainly the case for me: the fear of getting entangled in relationships that I cannot get out of is a big obstacle.\nThree possible situations\nI found three possible cases around which we could perhaps better map\/make sense of different kinds of caring activities involved.\nPossibly with the intention to co-design and prototype appropriate practical\/organisational settings\/resources\/artefacts to support care givers\/recipients...\n\u00a0\nCase 1: Preventing suicides in the hacker community.\nCase 2: Negotiating changing roles and needs (emotional and practical) of family members as parents slip into dementia. needs, capacities, and constraints where elderly family members are slipping into dementia\nCase 3: Helping refugees deal with emotional \/psychological\/ social challenges during the \"waiting\" phases in the asylum seeking process\n","comment_id":"21818","post_id":"6040","user_id":"45","parent_comment_id":"0","creation_date":"Friday, March 4, 2016 - 10:52","group_id":"5954"}},{"node":{"title":"At our space in Brussels :))","content":"\nA number of us got into really deep conversations, which I think everyone needed some time to process. But it is a conversation in progress, so I thought it might be a good idea to continue. Plus everyone's so cool, it would be nice to meetup again :)\n","comment_id":"21803","post_id":"6050","user_id":"45","parent_comment_id":"21802","creation_date":"Thursday, March 3, 2016 - 18:44","group_id":"5954"}},{"node":{"title":"At our space in Brussels :))","content":"\nA number of us got into really deep conversations, which I think everyone needed some time to process. But it is a conversation in progress, so I thought it might be a good idea to continue. Plus everyone's so cool, it would be nice to meetup again :)\n","comment_id":"21803","post_id":"6050","user_id":"45","parent_comment_id":"21802","creation_date":"Thursday, March 3, 2016 - 18:44","group_id":"5954"}},{"node":{"title":"I will be traveling...","content":"\n... but it seems like a great idea. Where is it?\u00a0\n","comment_id":"21802","post_id":"6050","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 18:37","group_id":"5954"}},{"node":{"title":"I will be traveling...","content":"\n... but it seems like a great idea. Where is it?\u00a0\n","comment_id":"21802","post_id":"6050","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 18:37","group_id":"5954"}},{"node":{"title":"Accidental breakthrough?","content":"\nYou seem to have stumbled into networks as a storytelling technique. Of course all visualisations tell stories, but in OpenCare we are telling stories of collaboration and interconnectedness, so networks work particularly well.\u00a0Is it worth doing some work on, trying to come up with self-explanatory visualizations?\n","comment_id":"21801","post_id":"6035","user_id":"34","parent_comment_id":"21783","creation_date":"Thursday, March 3, 2016 - 18:36","group_id":"4260"}},{"node":{"title":"Curiosity-driven","content":"\nIn writing the proposal, I insisted that people allocate generous travel budgets. The idea is exactly to be present at this kind of event, especially in the early stages of OpenCare. The more we do this, the more serendipitous we will be.\u00a0\u00a0\nSo I would say: yes, Guy, please let us know more. I encourage everyone who is interested to just go.\u00a0\n","comment_id":"21800","post_id":"6041","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 18:32","group_id":"5954"}},{"node":{"title":"Curiosity-driven","content":"\nIn writing the proposal, I insisted that people allocate generous travel budgets. The idea is exactly to be present at this kind of event, especially in the early stages of OpenCare. The more we do this, the more serendipitous we will be.\u00a0\u00a0\nSo I would say: yes, Guy, please let us know more. I encourage everyone who is interested to just go.\u00a0\n","comment_id":"21800","post_id":"6041","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 18:32","group_id":"5954"}},{"node":{"title":"Tulip it is","content":"\nI re-read the paper and made myself a map of the story with Tulip, extracting names of persons and\/or organizations by hand. The grouped nodes with outer\/inner labels is one of the marvelous things you can do with the software :-)\n","comment_id":"21799","post_id":"6035","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 18:21","group_id":"4260"}},{"node":{"title":"nice mapping!","content":"\n@melancon how did you make it?\nit's generated or drawn and from what data you found in the article?\nthanks\nZoe\n","comment_id":"21798","post_id":"6035","user_id":"3855","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 17:15","group_id":"4260"}},{"node":{"title":"Documentation uploaded","content":"\nhttps:\/\/edgeryders.eu\/en\/lote5-doc\/documentation-masters-of-networks-networks-of-care\n","comment_id":"21796","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 15:08","group_id":"5954"}},{"node":{"title":"Documentation uploaded","content":"\nhttps:\/\/edgeryders.eu\/en\/lote5-doc\/documentation-masters-of-networks-networks-of-care\n","comment_id":"21796","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 15:08","group_id":"5954"}},{"node":{"title":"Documentation uploaded","content":"\nhttps:\/\/edgeryders.eu\/en\/lote5-doc\/documentation-masters-of-networks-networks-of-care\n","comment_id":"21796","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 15:08","group_id":"5954"}},{"node":{"title":"Documentation uploaded","content":"\nhttps:\/\/edgeryders.eu\/en\/lote5-doc\/documentation-masters-of-networks-networks-of-care\n","comment_id":"21796","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 15:08","group_id":"5954"}},{"node":{"title":"short reflection","content":"\n\nI'll share a short reflection.\u00a0\n\n\n\u00a0\n\n\nWe read your document and discussed it in our team.\u00a0\n\n\nWe agreee with your approach of framing the debate in the intersection between concepts even if we are not so sure to feel comfortable with the subdivision you do in page 1.\u00a0\n\n\nWe think in fact that it's possible to achieve part of what you describe in A1 through tools and processes you describe in B2.\u00a0\n\n\n\u00a0\n\n\nIn our activities we experienced that an open system of activation happens especially when people are empowered with knowledge and problem-solving solutions (even complex) and are able to build bottom-up services thanks to the process of co-design and collaboration.\u00a0\n\n\n\u00a0\n\n\n\n We think that we need to talk about the design and implementation of B2 care \"artefacts\", for example regarding:\n\n\n - material \/ immaterial\n\n\n - simple \/ complex\u00a0\n\n\n - low impact \/ high impact\n\n\n - low growth rate \/ high growth rate\n\n\n \u00a0\n\n\n \u00a0\n\n\n","comment_id":"21795","post_id":"6040","user_id":"2604","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 13:30","group_id":"5954"}},{"node":{"title":"short reflection","content":"\n\nI'll share a short reflection.\u00a0\n\n\n\u00a0\n\n\nWe read your document and discussed it in our team.\u00a0\n\n\nWe agreee with your approach of framing the debate in the intersection between concepts even if we are not so sure to feel comfortable with the subdivision you do in page 1.\u00a0\n\n\nWe think in fact that it's possible to achieve part of what you describe in A1 through tools and processes you describe in B2.\u00a0\n\n\n\u00a0\n\n\nIn our activities we experienced that an open system of activation happens especially when people are empowered with knowledge and problem-solving solutions (even complex) and are able to build bottom-up services thanks to the process of co-design and collaboration.\u00a0\n\n\n\u00a0\n\n\n\n We think that we need to talk about the design and implementation of B2 care \"artefacts\", for example regarding:\n\n\n - material \/ immaterial\n\n\n - simple \/ complex\u00a0\n\n\n - low impact \/ high impact\n\n\n - low growth rate \/ high growth rate\n\n\n \u00a0\n\n\n \u00a0\n\n\n","comment_id":"21795","post_id":"6040","user_id":"2604","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 13:30","group_id":"5954"}},{"node":{"title":"Community != research team","content":"\nEzio, this is brilliant stuff, thanks. I will be breaking down my reactions into several comments, because I need to read it several times, it is so rich. For now, I would like to refer to your discussion of A1 vs. B2 OpenCare.\u00a0\nThe \"big scary problem\" we are looking at is, in my opinion, clearly A1. A1 is what the people out there are trying to do: rigging together DIY solutions to care problems. Where do I leave my children when I go to work, if state-provided daycare centers in Italy do not have capacity (Italy: the slots in daycare centers are 3% of the children of that age)? How do I keep on eye on the glucose in the bloodstream of my diabetic loved ones? Etc.\nBut, OpenCare (the project) is not open care (the activity). We are running a research project. What we research is B2: we reverse engineer how those spontaneous solutions came about. We do it by formulating hypotheses as to what kind of processes the opencarers out there used to invent and deploy their solutions. One hypothesis \u2013 that is, at the same time, an enabling condition for our own research activities is what I am going to call\u00a0the openness hypothesis:\nCommunity-driven care solutions correlate with open collaboration and open knowledge management practices.\u00a0\nThis is very clear in the hacking diabetes story. John Costik wrote code. If he had not open sourced it, the story would have ended there. But he did, so the next guy in the story, James Wedding, could reuse it and enrich the system. But now Wedding's own code inherited Costik's license, so it was open too,\u00a0and so on. You can do that kind of stuff with proprietary knowledge and top-down permission structures, but you need moneyed organisations. I predict community-driven solutions will depend heavily on openness.\u00a0\nConclusion. We study people who do A1. They will be the backbone of the OpenCare (the project) community.\u00a0We (the research team) ourselves focus on B2, and hope to learn ways that we can get more A1 stuff out there by showing people how to set their process right. This is why, though A1 is the object of our study, in practice we spend much of our time on B2.\nMakes sense?\n","comment_id":"21791","post_id":"6040","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 11:50","group_id":"5954"}},{"node":{"title":"Community != research team","content":"\nEzio, this is brilliant stuff, thanks. I will be breaking down my reactions into several comments, because I need to read it several times, it is so rich. For now, I would like to refer to your discussion of A1 vs. B2 OpenCare.\u00a0\nThe \"big scary problem\" we are looking at is, in my opinion, clearly A1. A1 is what the people out there are trying to do: rigging together DIY solutions to care problems. Where do I leave my children when I go to work, if state-provided daycare centers in Italy do not have capacity (Italy: the slots in daycare centers are 3% of the children of that age)? How do I keep on eye on the glucose in the bloodstream of my diabetic loved ones? Etc.\nBut, OpenCare (the project) is not open care (the activity). We are running a research project. What we research is B2: we reverse engineer how those spontaneous solutions came about. We do it by formulating hypotheses as to what kind of processes the opencarers out there used to invent and deploy their solutions. One hypothesis \u2013 that is, at the same time, an enabling condition for our own research activities is what I am going to call\u00a0the openness hypothesis:\nCommunity-driven care solutions correlate with open collaboration and open knowledge management practices.\u00a0\nThis is very clear in the hacking diabetes story. John Costik wrote code. If he had not open sourced it, the story would have ended there. But he did, so the next guy in the story, James Wedding, could reuse it and enrich the system. But now Wedding's own code inherited Costik's license, so it was open too,\u00a0and so on. You can do that kind of stuff with proprietary knowledge and top-down permission structures, but you need moneyed organisations. I predict community-driven solutions will depend heavily on openness.\u00a0\nConclusion. We study people who do A1. They will be the backbone of the OpenCare (the project) community.\u00a0We (the research team) ourselves focus on B2, and hope to learn ways that we can get more A1 stuff out there by showing people how to set their process right. This is why, though A1 is the object of our study, in practice we spend much of our time on B2.\nMakes sense?\n","comment_id":"21791","post_id":"6040","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, March 3, 2016 - 11:50","group_id":"5954"}},{"node":{"title":"Mea culpa","content":"\nI can't explain why I got it all wrong. Went back to the news article and read it carefully this time. Even made a network map of the story to claim your forgiveness ... (would be even more convincing if animated).\n\n","comment_id":"21783","post_id":"6035","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, March 2, 2016 - 19:24","group_id":"4260"}},{"node":{"title":"\"Solo heroes\"? ","content":"\nSolo heroes are not what I see, Guy. One guy writes code to upload the data to the cloud. Someone else reuses it. A third person starts a systematisation of the code to create an open source ecosystem. Then that ecosystem is enlarged to drive a pump, so you get an open source artificial pancreas. Then the insulin... I see it as very collective!\n","comment_id":"21781","post_id":"6035","user_id":"34","parent_comment_id":"21769","creation_date":"Wednesday, March 2, 2016 - 16:20","group_id":"4260"}},{"node":{"title":"Incredible story","content":"\nGreat, great story.\nIt is however reported as a solo heroic strive rather than as a community effort. The article does mention the \"biotech hacker space Counter Culture Labs\", and then the Open Insulin project, but makes it sound as if the individual initiative were what mattered in solving the situation.\nI would be interested to know more about the story, and learn about the collective effort that was put in. (Although it could well have been the result of individual effort after all.)\nOn \"where to put this stuff\", I suppose we should start archiving these stories somehow. My guess is a wiki would do it ok (but I understand ER wikis have been used as single page wikis most of the time). A (collection of) hackpad (or anything similar)\u00a0would probably be fine.\n","comment_id":"21769","post_id":"6035","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, March 2, 2016 - 09:03","group_id":"4260"}},{"node":{"title":"Thank you!","content":"\nIt was great to meet you Dora, you guys are really impressive and we hope we'll stay in touch.\u00a0\nI have not seen pull requests yet...\n","comment_id":"21763","post_id":"5870","user_id":"34","parent_comment_id":"21762","creation_date":"Tuesday, March 1, 2016 - 11:37","group_id":"5954"}},{"node":{"title":"Thank you!","content":"\nIt was great to meet you Dora, you guys are really impressive and we hope we'll stay in touch.\u00a0\nI have not seen pull requests yet...\n","comment_id":"21763","post_id":"5870","user_id":"34","parent_comment_id":"21762","creation_date":"Tuesday, March 1, 2016 - 11:37","group_id":"5954"}},{"node":{"title":"Thank you!","content":"\nIt was great to meet you Dora, you guys are really impressive and we hope we'll stay in touch.\u00a0\nI have not seen pull requests yet...\n","comment_id":"21763","post_id":"5870","user_id":"34","parent_comment_id":"21762","creation_date":"Tuesday, March 1, 2016 - 11:37","group_id":"5954"}},{"node":{"title":"Thank you!","content":"\nIt was great to meet you Dora, you guys are really impressive and we hope we'll stay in touch.\u00a0\nI have not seen pull requests yet...\n","comment_id":"21763","post_id":"5870","user_id":"34","parent_comment_id":"21762","creation_date":"Tuesday, March 1, 2016 - 11:37","group_id":"5954"}},{"node":{"title":"Wikipedia code","content":"\nHi there, thank you so much for the event, it was a nice experience!\nOur Wikipedia code is a branch of the spaghetti-open-data GitHub repository. The branch is called \"dev-moe\" and I think Moe has already sent a merge request.\nYou can browse the code here: https:\/\/github.com\/FuturoAnteriore\/visualizing-self-diagnosis\/tree\/dev-moe\nCheers!\n\u00a0\n","comment_id":"21762","post_id":"5870","user_id":"8329","parent_comment_id":"21761","creation_date":"Tuesday, March 1, 2016 - 11:25","group_id":"5954"}},{"node":{"title":"Wikipedia code","content":"\nHi there, thank you so much for the event, it was a nice experience!\nOur Wikipedia code is a branch of the spaghetti-open-data GitHub repository. The branch is called \"dev-moe\" and I think Moe has already sent a merge request.\nYou can browse the code here: https:\/\/github.com\/FuturoAnteriore\/visualizing-self-diagnosis\/tree\/dev-moe\nCheers!\n\u00a0\n","comment_id":"21762","post_id":"5870","user_id":"8329","parent_comment_id":"21761","creation_date":"Tuesday, March 1, 2016 - 11:25","group_id":"5954"}},{"node":{"title":"Wikipedia code","content":"\nHi there, thank you so much for the event, it was a nice experience!\nOur Wikipedia code is a branch of the spaghetti-open-data GitHub repository. The branch is called \"dev-moe\" and I think Moe has already sent a merge request.\nYou can browse the code here: https:\/\/github.com\/FuturoAnteriore\/visualizing-self-diagnosis\/tree\/dev-moe\nCheers!\n\u00a0\n","comment_id":"21762","post_id":"5870","user_id":"8329","parent_comment_id":"21761","creation_date":"Tuesday, March 1, 2016 - 11:25","group_id":"5954"}},{"node":{"title":"Wikipedia code","content":"\nHi there, thank you so much for the event, it was a nice experience!\nOur Wikipedia code is a branch of the spaghetti-open-data GitHub repository. The branch is called \"dev-moe\" and I think Moe has already sent a merge request.\nYou can browse the code here: https:\/\/github.com\/FuturoAnteriore\/visualizing-self-diagnosis\/tree\/dev-moe\nCheers!\n\u00a0\n","comment_id":"21762","post_id":"5870","user_id":"8329","parent_comment_id":"21761","creation_date":"Tuesday, March 1, 2016 - 11:25","group_id":"5954"}},{"node":{"title":"Hackpad updated","content":"\nGreat work, @RossellaB.\u00a0I have made some improvements to the hackpad myself.\u00a0\nThe main thing we need now is the code for the Wikipedia track by MoE and Dora.\u00a0\n","comment_id":"21761","post_id":"5870","user_id":"34","parent_comment_id":"21755","creation_date":"Tuesday, March 1, 2016 - 11:15","group_id":"5954"}},{"node":{"title":"Hackpad updated","content":"\nGreat work, @RossellaB.\u00a0I have made some improvements to the hackpad myself.\u00a0\nThe main thing we need now is the code for the Wikipedia track by MoE and Dora.\u00a0\n","comment_id":"21761","post_id":"5870","user_id":"34","parent_comment_id":"21755","creation_date":"Tuesday, March 1, 2016 - 11:15","group_id":"5954"}},{"node":{"title":"Hackpad updated","content":"\nGreat work, @RossellaB.\u00a0I have made some improvements to the hackpad myself.\u00a0\nThe main thing we need now is the code for the Wikipedia track by MoE and Dora.\u00a0\n","comment_id":"21761","post_id":"5870","user_id":"34","parent_comment_id":"21755","creation_date":"Tuesday, March 1, 2016 - 11:15","group_id":"5954"}},{"node":{"title":"Hackpad updated","content":"\nGreat work, @RossellaB.\u00a0I have made some improvements to the hackpad myself.\u00a0\nThe main thing we need now is the code for the Wikipedia track by MoE and Dora.\u00a0\n","comment_id":"21761","post_id":"5870","user_id":"34","parent_comment_id":"21755","creation_date":"Tuesday, March 1, 2016 - 11:15","group_id":"5954"}},{"node":{"title":"Hackpad: please read and make improvements","content":"\nHi all,\nIt was really great meeting you today! I have written a report on the spot on the hackpad for this group.\nPlease have a look and make adjustments.\nEnjoy the rest of the meetup and see you all online soon!\nRossella\n","comment_id":"21755","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Saturday, February 27, 2016 - 16:53","group_id":"5954"}},{"node":{"title":"Hackpad: please read and make improvements","content":"\nHi all,\nIt was really great meeting you today! I have written a report on the spot on the hackpad for this group.\nPlease have a look and make adjustments.\nEnjoy the rest of the meetup and see you all online soon!\nRossella\n","comment_id":"21755","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Saturday, February 27, 2016 - 16:53","group_id":"5954"}},{"node":{"title":"Hackpad: please read and make improvements","content":"\nHi all,\nIt was really great meeting you today! I have written a report on the spot on the hackpad for this group.\nPlease have a look and make adjustments.\nEnjoy the rest of the meetup and see you all online soon!\nRossella\n","comment_id":"21755","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Saturday, February 27, 2016 - 16:53","group_id":"5954"}},{"node":{"title":"Hackpad: please read and make improvements","content":"\nHi all,\nIt was really great meeting you today! I have written a report on the spot on the hackpad for this group.\nPlease have a look and make adjustments.\nEnjoy the rest of the meetup and see you all online soon!\nRossella\n","comment_id":"21755","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Saturday, February 27, 2016 - 16:53","group_id":"5954"}},{"node":{"title":"Asking for help","content":"\nI am not that used with Linux myself.\nDid you have a look at the sourceforge\u00a0forum?\u00a0In case you do not find proper help, please send email to Patrick Mary , cc'ed to me. He is the main engineer in charge of Tulip.\nGuy\n","comment_id":"21729","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 25, 2016 - 09:15","group_id":"5954"}},{"node":{"title":"Asking for help","content":"\nI am not that used with Linux myself.\nDid you have a look at the sourceforge\u00a0forum?\u00a0In case you do not find proper help, please send email to Patrick Mary , cc'ed to me. He is the main engineer in charge of Tulip.\nGuy\n","comment_id":"21729","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 25, 2016 - 09:15","group_id":"5954"}},{"node":{"title":"Asking for help","content":"\nI am not that used with Linux myself.\nDid you have a look at the sourceforge\u00a0forum?\u00a0In case you do not find proper help, please send email to Patrick Mary , cc'ed to me. He is the main engineer in charge of Tulip.\nGuy\n","comment_id":"21729","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 25, 2016 - 09:15","group_id":"5954"}},{"node":{"title":"Asking for help","content":"\nI am not that used with Linux myself.\nDid you have a look at the sourceforge\u00a0forum?\u00a0In case you do not find proper help, please send email to Patrick Mary , cc'ed to me. He is the main engineer in charge of Tulip.\nGuy\n","comment_id":"21729","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 25, 2016 - 09:15","group_id":"5954"}},{"node":{"title":"am having problem with","content":"\nam having problem with installing tulip on ubuntu...am still new with ubuntu so might need some help. will try again in the morning though\n","comment_id":"21725","post_id":"5870","user_id":"5616","parent_comment_id":"21722","creation_date":"Thursday, February 25, 2016 - 03:47","group_id":"5954"}},{"node":{"title":"am having problem with","content":"\nam having problem with installing tulip on ubuntu...am still new with ubuntu so might need some help. will try again in the morning though\n","comment_id":"21725","post_id":"5870","user_id":"5616","parent_comment_id":"21722","creation_date":"Thursday, February 25, 2016 - 03:47","group_id":"5954"}},{"node":{"title":"am having problem with","content":"\nam having problem with installing tulip on ubuntu...am still new with ubuntu so might need some help. will try again in the morning though\n","comment_id":"21725","post_id":"5870","user_id":"5616","parent_comment_id":"21722","creation_date":"Thursday, February 25, 2016 - 03:47","group_id":"5954"}},{"node":{"title":"am having problem with","content":"\nam having problem with installing tulip on ubuntu...am still new with ubuntu so might need some help. will try again in the morning though\n","comment_id":"21725","post_id":"5870","user_id":"5616","parent_comment_id":"21722","creation_date":"Thursday, February 25, 2016 - 03:47","group_id":"5954"}},{"node":{"title":"Getting ready","content":"\nTo those of you who plan to attend to Mn4, and more particularly to those I expect to actively \"play\" with networks:\n@Alberto @Hazem @dora @MoE @RossellaB\u00a0-- I must be forgetting someone ...\nWe will be using the Tulip network viz framework. Tulip can be downloaded from its homepage\u00a0(follow the download link). Other options are also possible, but we might enjoy Tulip's python scripting capabilities. The Tulip API is quite intuitive, although the doc could be improved. I'll be there to help.\nHere is a file you could load after installing Tulip (install is easy, unroll the .exe or .dmg depending on the OS you are using). The file contains users, posts and comments, together with associated\u00a0tags. All networks in this file connect different types of entites, users to posts or comments, comments to tags,\u00a0etc. That's why it is named \"bipartite\".\nOur task will be to explore how we may then model\u00a0interaction between users,\u00a0inferred from the available traces (comments to posts, by whom, etc.).\nOnce we have a user-to-user file, we will then want to use Detangler to inspect tags around which interaction takes place. I plan to make some code available to ease the process of producing Detangler files from user-to-user networks built with Tulip.\n","comment_id":"21722","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 24, 2016 - 15:35","group_id":"5954"}},{"node":{"title":"Getting ready","content":"\nTo those of you who plan to attend to Mn4, and more particularly to those I expect to actively \"play\" with networks:\n@Alberto @Hazem @dora @MoE @RossellaB\u00a0-- I must be forgetting someone ...\nWe will be using the Tulip network viz framework. Tulip can be downloaded from its homepage\u00a0(follow the download link). Other options are also possible, but we might enjoy Tulip's python scripting capabilities. The Tulip API is quite intuitive, although the doc could be improved. I'll be there to help.\nHere is a file you could load after installing Tulip (install is easy, unroll the .exe or .dmg depending on the OS you are using). The file contains users, posts and comments, together with associated\u00a0tags. All networks in this file connect different types of entites, users to posts or comments, comments to tags,\u00a0etc. That's why it is named \"bipartite\".\nOur task will be to explore how we may then model\u00a0interaction between users,\u00a0inferred from the available traces (comments to posts, by whom, etc.).\nOnce we have a user-to-user file, we will then want to use Detangler to inspect tags around which interaction takes place. I plan to make some code available to ease the process of producing Detangler files from user-to-user networks built with Tulip.\n","comment_id":"21722","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 24, 2016 - 15:35","group_id":"5954"}},{"node":{"title":"Getting ready","content":"\nTo those of you who plan to attend to Mn4, and more particularly to those I expect to actively \"play\" with networks:\n@Alberto @Hazem @dora @MoE @RossellaB\u00a0-- I must be forgetting someone ...\nWe will be using the Tulip network viz framework. Tulip can be downloaded from its homepage\u00a0(follow the download link). Other options are also possible, but we might enjoy Tulip's python scripting capabilities. The Tulip API is quite intuitive, although the doc could be improved. I'll be there to help.\nHere is a file you could load after installing Tulip (install is easy, unroll the .exe or .dmg depending on the OS you are using). The file contains users, posts and comments, together with associated\u00a0tags. All networks in this file connect different types of entites, users to posts or comments, comments to tags,\u00a0etc. That's why it is named \"bipartite\".\nOur task will be to explore how we may then model\u00a0interaction between users,\u00a0inferred from the available traces (comments to posts, by whom, etc.).\nOnce we have a user-to-user file, we will then want to use Detangler to inspect tags around which interaction takes place. I plan to make some code available to ease the process of producing Detangler files from user-to-user networks built with Tulip.\n","comment_id":"21722","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 24, 2016 - 15:35","group_id":"5954"}},{"node":{"title":"Getting ready","content":"\nTo those of you who plan to attend to Mn4, and more particularly to those I expect to actively \"play\" with networks:\n@Alberto @Hazem @dora @MoE @RossellaB\u00a0-- I must be forgetting someone ...\nWe will be using the Tulip network viz framework. Tulip can be downloaded from its homepage\u00a0(follow the download link). Other options are also possible, but we might enjoy Tulip's python scripting capabilities. The Tulip API is quite intuitive, although the doc could be improved. I'll be there to help.\nHere is a file you could load after installing Tulip (install is easy, unroll the .exe or .dmg depending on the OS you are using). The file contains users, posts and comments, together with associated\u00a0tags. All networks in this file connect different types of entites, users to posts or comments, comments to tags,\u00a0etc. That's why it is named \"bipartite\".\nOur task will be to explore how we may then model\u00a0interaction between users,\u00a0inferred from the available traces (comments to posts, by whom, etc.).\nOnce we have a user-to-user file, we will then want to use Detangler to inspect tags around which interaction takes place. I plan to make some code available to ease the process of producing Detangler files from user-to-user networks built with Tulip.\n","comment_id":"21722","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 24, 2016 - 15:35","group_id":"5954"}},{"node":{"title":"Multiplex it is","content":"\n@MoE @Alberto\nYes, multiplex. I find this a convenient concept, probably more buzzwordy than deep -- anything is multiplex if you think about it ... it depends on what you are ready to term a layer ... We'll have plenty of time to chew about this.\nYou got things right. There are several ways to compute similarity between entities described by a \"bag of words\" (which you can actually see as embedded in a high-dimensional vector space ...). The better your index (words associated with entities), the better the similarity measures, from which you usually derive a topology by linking similar enough entities. As for the pagecount, I would expect larger time span to lead to\u00a0somehow uniform pagecounts over all pages, while finer time spans may\u00a0indicate when\/if pages are simultaneously consulted.\nThe link structure you consider, the similarity measure you computeIt all depends on what question\/task you are supporting.\nAs I see it, you have done quite a lot of work and will be bringing fantastic material to the workshop. This may well open the door to interesting future collaboration. I mean, people usually get together to finish up what has been done during the workshop, sometimes\u00a0ending as blog posts, repots, or even scientific publications. In this case, my feeling is we may have things to say to the academic crowd. @Alberto?\n","comment_id":"21690","post_id":"5870","user_id":"6399","parent_comment_id":"21686","creation_date":"Tuesday, February 23, 2016 - 09:46","group_id":"5954"}},{"node":{"title":"Multiplex it is","content":"\n@MoE @Alberto\nYes, multiplex. I find this a convenient concept, probably more buzzwordy than deep -- anything is multiplex if you think about it ... it depends on what you are ready to term a layer ... We'll have plenty of time to chew about this.\nYou got things right. There are several ways to compute similarity between entities described by a \"bag of words\" (which you can actually see as embedded in a high-dimensional vector space ...). The better your index (words associated with entities), the better the similarity measures, from which you usually derive a topology by linking similar enough entities. As for the pagecount, I would expect larger time span to lead to\u00a0somehow uniform pagecounts over all pages, while finer time spans may\u00a0indicate when\/if pages are simultaneously consulted.\nThe link structure you consider, the similarity measure you computeIt all depends on what question\/task you are supporting.\nAs I see it, you have done quite a lot of work and will be bringing fantastic material to the workshop. This may well open the door to interesting future collaboration. I mean, people usually get together to finish up what has been done during the workshop, sometimes\u00a0ending as blog posts, repots, or even scientific publications. In this case, my feeling is we may have things to say to the academic crowd. @Alberto?\n","comment_id":"21690","post_id":"5870","user_id":"6399","parent_comment_id":"21686","creation_date":"Tuesday, February 23, 2016 - 09:46","group_id":"5954"}},{"node":{"title":"Multiplex it is","content":"\n@MoE @Alberto\nYes, multiplex. I find this a convenient concept, probably more buzzwordy than deep -- anything is multiplex if you think about it ... it depends on what you are ready to term a layer ... We'll have plenty of time to chew about this.\nYou got things right. There are several ways to compute similarity between entities described by a \"bag of words\" (which you can actually see as embedded in a high-dimensional vector space ...). The better your index (words associated with entities), the better the similarity measures, from which you usually derive a topology by linking similar enough entities. As for the pagecount, I would expect larger time span to lead to\u00a0somehow uniform pagecounts over all pages, while finer time spans may\u00a0indicate when\/if pages are simultaneously consulted.\nThe link structure you consider, the similarity measure you computeIt all depends on what question\/task you are supporting.\nAs I see it, you have done quite a lot of work and will be bringing fantastic material to the workshop. This may well open the door to interesting future collaboration. I mean, people usually get together to finish up what has been done during the workshop, sometimes\u00a0ending as blog posts, repots, or even scientific publications. In this case, my feeling is we may have things to say to the academic crowd. @Alberto?\n","comment_id":"21690","post_id":"5870","user_id":"6399","parent_comment_id":"21686","creation_date":"Tuesday, February 23, 2016 - 09:46","group_id":"5954"}},{"node":{"title":"Multiplex it is","content":"\n@MoE @Alberto\nYes, multiplex. I find this a convenient concept, probably more buzzwordy than deep -- anything is multiplex if you think about it ... it depends on what you are ready to term a layer ... We'll have plenty of time to chew about this.\nYou got things right. There are several ways to compute similarity between entities described by a \"bag of words\" (which you can actually see as embedded in a high-dimensional vector space ...). The better your index (words associated with entities), the better the similarity measures, from which you usually derive a topology by linking similar enough entities. As for the pagecount, I would expect larger time span to lead to\u00a0somehow uniform pagecounts over all pages, while finer time spans may\u00a0indicate when\/if pages are simultaneously consulted.\nThe link structure you consider, the similarity measure you computeIt all depends on what question\/task you are supporting.\nAs I see it, you have done quite a lot of work and will be bringing fantastic material to the workshop. This may well open the door to interesting future collaboration. I mean, people usually get together to finish up what has been done during the workshop, sometimes\u00a0ending as blog posts, repots, or even scientific publications. In this case, my feeling is we may have things to say to the academic crowd. @Alberto?\n","comment_id":"21690","post_id":"5870","user_id":"6399","parent_comment_id":"21686","creation_date":"Tuesday, February 23, 2016 - 09:46","group_id":"5954"}},{"node":{"title":"\"Multiplex Network\" sounds sleek! :)","content":"\nI had no idea that was called a multiplex network but I googled it and, yes, it looks exactly like what I was thinking.\nWhen I mentioned a 3D visualization, I had in mind exactly this:\n\nwhere each coloured layer is a language, each dot is a page, each link between pages sybolizes a semantic affinity. @Alberto we're on the same page, right?\nRegarding @Alberto's and @melancon's concerns about time, I agree. The whole process might not be trivial nor quick.\nOn one end, that's why I hoped we would have had more than 2 hours of programming; but after what @Alberto replied, I think it is reasonable to think of a simple proof of concept (we choose one question and prove via code how we \"could\" provide an answer). If that proves to be worth it, I\/we can invest some more time the day after, to extend the code and produce something more meaningful.\nOn the other end, I was trying to produce as much code and db data as I can, to have a good base to start with (and to share with everybody else, obviously).\nSo far I have most of the code in place to do the data mining. I had to go through a few iterations, as we have limited db storage (free account on mongolab) and I needed to find a way both to do quick grouped queries and to store the results efficiently enough. I think I'm pretty close: I could store around 25K entries in around 6Mb (of 200Mb we are allowed) in a few hours. These entries count 4.5K English pages and all their available translations in any language. This means that within 24h we should be able to populate the db with all the pages, from scratch.\nThis does not include the page counts, though, which require a separate query and I'm still figuring out if there's a way to optimize those (ie. not sending a query per page).\nI'll test this later or tomorrow, but I'm confident I can get decent results in reasonable time.\nThis partially answers @melancon's question about what I'm storing. In terms of page counts, both because of time and storage restrictions, I was thinking to store sample counts for a given period (ie. 1 month of pagecounts, per day), instead of a tighter sampling.\nI thought that, for the sake of demonstration, any timeframe can be used to prove the concept, and we can assume that the real measures will then take place on more accurate\/representative data.\nDo you think it is acceptable, as an assumption?\nDoes it still sound too scary? I trust your judgement guys, seriously\n","comment_id":"21686","post_id":"5870","user_id":"4846","parent_comment_id":"21621","creation_date":"Tuesday, February 23, 2016 - 00:17","group_id":"5954"}},{"node":{"title":"\"Multiplex Network\" sounds sleek! :)","content":"\nI had no idea that was called a multiplex network but I googled it and, yes, it looks exactly like what I was thinking.\nWhen I mentioned a 3D visualization, I had in mind exactly this:\n\nwhere each coloured layer is a language, each dot is a page, each link between pages sybolizes a semantic affinity. @Alberto we're on the same page, right?\nRegarding @Alberto's and @melancon's concerns about time, I agree. The whole process might not be trivial nor quick.\nOn one end, that's why I hoped we would have had more than 2 hours of programming; but after what @Alberto replied, I think it is reasonable to think of a simple proof of concept (we choose one question and prove via code how we \"could\" provide an answer). If that proves to be worth it, I\/we can invest some more time the day after, to extend the code and produce something more meaningful.\nOn the other end, I was trying to produce as much code and db data as I can, to have a good base to start with (and to share with everybody else, obviously).\nSo far I have most of the code in place to do the data mining. I had to go through a few iterations, as we have limited db storage (free account on mongolab) and I needed to find a way both to do quick grouped queries and to store the results efficiently enough. I think I'm pretty close: I could store around 25K entries in around 6Mb (of 200Mb we are allowed) in a few hours. These entries count 4.5K English pages and all their available translations in any language. This means that within 24h we should be able to populate the db with all the pages, from scratch.\nThis does not include the page counts, though, which require a separate query and I'm still figuring out if there's a way to optimize those (ie. not sending a query per page).\nI'll test this later or tomorrow, but I'm confident I can get decent results in reasonable time.\nThis partially answers @melancon's question about what I'm storing. In terms of page counts, both because of time and storage restrictions, I was thinking to store sample counts for a given period (ie. 1 month of pagecounts, per day), instead of a tighter sampling.\nI thought that, for the sake of demonstration, any timeframe can be used to prove the concept, and we can assume that the real measures will then take place on more accurate\/representative data.\nDo you think it is acceptable, as an assumption?\nDoes it still sound too scary? I trust your judgement guys, seriously\n","comment_id":"21686","post_id":"5870","user_id":"4846","parent_comment_id":"21621","creation_date":"Tuesday, February 23, 2016 - 00:17","group_id":"5954"}},{"node":{"title":"\"Multiplex Network\" sounds sleek! :)","content":"\nI had no idea that was called a multiplex network but I googled it and, yes, it looks exactly like what I was thinking.\nWhen I mentioned a 3D visualization, I had in mind exactly this:\n\nwhere each coloured layer is a language, each dot is a page, each link between pages sybolizes a semantic affinity. @Alberto we're on the same page, right?\nRegarding @Alberto's and @melancon's concerns about time, I agree. The whole process might not be trivial nor quick.\nOn one end, that's why I hoped we would have had more than 2 hours of programming; but after what @Alberto replied, I think it is reasonable to think of a simple proof of concept (we choose one question and prove via code how we \"could\" provide an answer). If that proves to be worth it, I\/we can invest some more time the day after, to extend the code and produce something more meaningful.\nOn the other end, I was trying to produce as much code and db data as I can, to have a good base to start with (and to share with everybody else, obviously).\nSo far I have most of the code in place to do the data mining. I had to go through a few iterations, as we have limited db storage (free account on mongolab) and I needed to find a way both to do quick grouped queries and to store the results efficiently enough. I think I'm pretty close: I could store around 25K entries in around 6Mb (of 200Mb we are allowed) in a few hours. These entries count 4.5K English pages and all their available translations in any language. This means that within 24h we should be able to populate the db with all the pages, from scratch.\nThis does not include the page counts, though, which require a separate query and I'm still figuring out if there's a way to optimize those (ie. not sending a query per page).\nI'll test this later or tomorrow, but I'm confident I can get decent results in reasonable time.\nThis partially answers @melancon's question about what I'm storing. In terms of page counts, both because of time and storage restrictions, I was thinking to store sample counts for a given period (ie. 1 month of pagecounts, per day), instead of a tighter sampling.\nI thought that, for the sake of demonstration, any timeframe can be used to prove the concept, and we can assume that the real measures will then take place on more accurate\/representative data.\nDo you think it is acceptable, as an assumption?\nDoes it still sound too scary? I trust your judgement guys, seriously\n","comment_id":"21686","post_id":"5870","user_id":"4846","parent_comment_id":"21621","creation_date":"Tuesday, February 23, 2016 - 00:17","group_id":"5954"}},{"node":{"title":"\"Multiplex Network\" sounds sleek! :)","content":"\nI had no idea that was called a multiplex network but I googled it and, yes, it looks exactly like what I was thinking.\nWhen I mentioned a 3D visualization, I had in mind exactly this:\n\nwhere each coloured layer is a language, each dot is a page, each link between pages sybolizes a semantic affinity. @Alberto we're on the same page, right?\nRegarding @Alberto's and @melancon's concerns about time, I agree. The whole process might not be trivial nor quick.\nOn one end, that's why I hoped we would have had more than 2 hours of programming; but after what @Alberto replied, I think it is reasonable to think of a simple proof of concept (we choose one question and prove via code how we \"could\" provide an answer). If that proves to be worth it, I\/we can invest some more time the day after, to extend the code and produce something more meaningful.\nOn the other end, I was trying to produce as much code and db data as I can, to have a good base to start with (and to share with everybody else, obviously).\nSo far I have most of the code in place to do the data mining. I had to go through a few iterations, as we have limited db storage (free account on mongolab) and I needed to find a way both to do quick grouped queries and to store the results efficiently enough. I think I'm pretty close: I could store around 25K entries in around 6Mb (of 200Mb we are allowed) in a few hours. These entries count 4.5K English pages and all their available translations in any language. This means that within 24h we should be able to populate the db with all the pages, from scratch.\nThis does not include the page counts, though, which require a separate query and I'm still figuring out if there's a way to optimize those (ie. not sending a query per page).\nI'll test this later or tomorrow, but I'm confident I can get decent results in reasonable time.\nThis partially answers @melancon's question about what I'm storing. In terms of page counts, both because of time and storage restrictions, I was thinking to store sample counts for a given period (ie. 1 month of pagecounts, per day), instead of a tighter sampling.\nI thought that, for the sake of demonstration, any timeframe can be used to prove the concept, and we can assume that the real measures will then take place on more accurate\/representative data.\nDo you think it is acceptable, as an assumption?\nDoes it still sound too scary? I trust your judgement guys, seriously\n","comment_id":"21686","post_id":"5870","user_id":"4846","parent_comment_id":"21621","creation_date":"Tuesday, February 23, 2016 - 00:17","group_id":"5954"}},{"node":{"title":"thanks! ","content":"Thank you for the explanation Guy, now it starts to make sense. I know more or less what a force directed layout is, although I'm not familiar with the maths behind it. ","comment_id":"21641","post_id":"5870","user_id":"8235","parent_comment_id":"21490","creation_date":"Sunday, February 21, 2016 - 10:05","group_id":"5954"}},{"node":{"title":"thanks! ","content":"Thank you for the explanation Guy, now it starts to make sense. I know more or less what a force directed layout is, although I'm not familiar with the maths behind it. ","comment_id":"21641","post_id":"5870","user_id":"8235","parent_comment_id":"21490","creation_date":"Sunday, February 21, 2016 - 10:05","group_id":"5954"}},{"node":{"title":"thanks! ","content":"Thank you for the explanation Guy, now it starts to make sense. I know more or less what a force directed layout is, although I'm not familiar with the maths behind it. ","comment_id":"21641","post_id":"5870","user_id":"8235","parent_comment_id":"21490","creation_date":"Sunday, February 21, 2016 - 10:05","group_id":"5954"}},{"node":{"title":"thanks! ","content":"Thank you for the explanation Guy, now it starts to make sense. I know more or less what a force directed layout is, although I'm not familiar with the maths behind it. ","comment_id":"21641","post_id":"5870","user_id":"8235","parent_comment_id":"21490","creation_date":"Sunday, February 21, 2016 - 10:05","group_id":"5954"}},{"node":{"title":"Let's do it!","content":"\n@MoE this is great news. I didn't dare put that forward for MoN4 as I fear I would not be able to keep up to my promise.\nIt's seems you have already done part of the work, and about all of the thinking. Then go ahead, I'll register to your session :-)\nI am quite sure I will learn from your experience. And if I understood correctly, you already have put up a db registering pageoucnts on an hourly basis -- all great news.\nLooking forward to see you in Brussels next week.\n","comment_id":"21626","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Saturday, February 20, 2016 - 18:05","group_id":"5954"}},{"node":{"title":"Let's do it!","content":"\n@MoE this is great news. I didn't dare put that forward for MoN4 as I fear I would not be able to keep up to my promise.\nIt's seems you have already done part of the work, and about all of the thinking. Then go ahead, I'll register to your session :-)\nI am quite sure I will learn from your experience. And if I understood correctly, you already have put up a db registering pageoucnts on an hourly basis -- all great news.\nLooking forward to see you in Brussels next week.\n","comment_id":"21626","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Saturday, February 20, 2016 - 18:05","group_id":"5954"}},{"node":{"title":"Let's do it!","content":"\n@MoE this is great news. I didn't dare put that forward for MoN4 as I fear I would not be able to keep up to my promise.\nIt's seems you have already done part of the work, and about all of the thinking. Then go ahead, I'll register to your session :-)\nI am quite sure I will learn from your experience. And if I understood correctly, you already have put up a db registering pageoucnts on an hourly basis -- all great news.\nLooking forward to see you in Brussels next week.\n","comment_id":"21626","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Saturday, February 20, 2016 - 18:05","group_id":"5954"}},{"node":{"title":"Let's do it!","content":"\n@MoE this is great news. I didn't dare put that forward for MoN4 as I fear I would not be able to keep up to my promise.\nIt's seems you have already done part of the work, and about all of the thinking. Then go ahead, I'll register to your session :-)\nI am quite sure I will learn from your experience. And if I understood correctly, you already have put up a db registering pageoucnts on an hourly basis -- all great news.\nLooking forward to see you in Brussels next week.\n","comment_id":"21626","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Saturday, February 20, 2016 - 18:05","group_id":"5954"}},{"node":{"title":"Mentions module","content":"\nThe mentions module started acting up after we upgraded the site to the newest version of Drupal Commons and is currently disabled. See here.\u00a0\n","comment_id":"21623","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:18","group_id":"5954"}},{"node":{"title":"Mentions module","content":"\nThe mentions module started acting up after we upgraded the site to the newest version of Drupal Commons and is currently disabled. See here.\u00a0\n","comment_id":"21623","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:18","group_id":"5954"}},{"node":{"title":"Mentions module","content":"\nThe mentions module started acting up after we upgraded the site to the newest version of Drupal Commons and is currently disabled. See here.\u00a0\n","comment_id":"21623","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:18","group_id":"5954"}},{"node":{"title":"Mentions module","content":"\nThe mentions module started acting up after we upgraded the site to the newest version of Drupal Commons and is currently disabled. See here.\u00a0\n","comment_id":"21623","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:18","group_id":"5954"}},{"node":{"title":"These are two hackathons, not one!","content":"\nI think I understand. You want to do two things.\n\nA multiplex\u00a0network of pages connected by links. The multiplex part takes advantage of wikidata: we know that \"influenza\" in English is the same thing as \"grippe\" in French through Wikidata. So, we can follow\u00a0all the links from \"influenza\" and all the links from \"grippe\"; these will induce two networks, one English-speaking and the other one French-speaking\". The networks might be different, and we can analyze that difference. In practice, you have a multiplex network in which each language is one layer of the multiplex.\nA page count exercise. Page counts have a separate collection method, that we discussed and fiddled around back in 32C3.\nIf both exercises are successful, you have a multiplex network of medical pages in Wikipedia, each of which is associated to a number in terms of page counts per unit of time. You could then map this information onto the network, even visually:\n\n\nWhat I like about the approach is that it is relatively\u00a0simple to compute correlation coefficients across different versions of (medical)\u00a0Wikipedia. Correlation betweeen two languages is high if the probability of being connected of two random\u00a0pages in language A, conditional to those two pages being connected in language B, is close to 1. Notice that you could do this without even looking at page counts!\u00a0It\u00a0seems like a lot of work for one day of hacking, but if that's what you want to do, go for it.\u00a0\n","comment_id":"21621","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:12","group_id":"5954"}},{"node":{"title":"These are two hackathons, not one!","content":"\nI think I understand. You want to do two things.\n\nA multiplex\u00a0network of pages connected by links. The multiplex part takes advantage of wikidata: we know that \"influenza\" in English is the same thing as \"grippe\" in French through Wikidata. So, we can follow\u00a0all the links from \"influenza\" and all the links from \"grippe\"; these will induce two networks, one English-speaking and the other one French-speaking\". The networks might be different, and we can analyze that difference. In practice, you have a multiplex network in which each language is one layer of the multiplex.\nA page count exercise. Page counts have a separate collection method, that we discussed and fiddled around back in 32C3.\nIf both exercises are successful, you have a multiplex network of medical pages in Wikipedia, each of which is associated to a number in terms of page counts per unit of time. You could then map this information onto the network, even visually:\n\n\nWhat I like about the approach is that it is relatively\u00a0simple to compute correlation coefficients across different versions of (medical)\u00a0Wikipedia. Correlation betweeen two languages is high if the probability of being connected of two random\u00a0pages in language A, conditional to those two pages being connected in language B, is close to 1. Notice that you could do this without even looking at page counts!\u00a0It\u00a0seems like a lot of work for one day of hacking, but if that's what you want to do, go for it.\u00a0\n","comment_id":"21621","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:12","group_id":"5954"}},{"node":{"title":"These are two hackathons, not one!","content":"\nI think I understand. You want to do two things.\n\nA multiplex\u00a0network of pages connected by links. The multiplex part takes advantage of wikidata: we know that \"influenza\" in English is the same thing as \"grippe\" in French through Wikidata. So, we can follow\u00a0all the links from \"influenza\" and all the links from \"grippe\"; these will induce two networks, one English-speaking and the other one French-speaking\". The networks might be different, and we can analyze that difference. In practice, you have a multiplex network in which each language is one layer of the multiplex.\nA page count exercise. Page counts have a separate collection method, that we discussed and fiddled around back in 32C3.\nIf both exercises are successful, you have a multiplex network of medical pages in Wikipedia, each of which is associated to a number in terms of page counts per unit of time. You could then map this information onto the network, even visually:\n\n\nWhat I like about the approach is that it is relatively\u00a0simple to compute correlation coefficients across different versions of (medical)\u00a0Wikipedia. Correlation betweeen two languages is high if the probability of being connected of two random\u00a0pages in language A, conditional to those two pages being connected in language B, is close to 1. Notice that you could do this without even looking at page counts!\u00a0It\u00a0seems like a lot of work for one day of hacking, but if that's what you want to do, go for it.\u00a0\n","comment_id":"21621","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:12","group_id":"5954"}},{"node":{"title":"These are two hackathons, not one!","content":"\nI think I understand. You want to do two things.\n\nA multiplex\u00a0network of pages connected by links. The multiplex part takes advantage of wikidata: we know that \"influenza\" in English is the same thing as \"grippe\" in French through Wikidata. So, we can follow\u00a0all the links from \"influenza\" and all the links from \"grippe\"; these will induce two networks, one English-speaking and the other one French-speaking\". The networks might be different, and we can analyze that difference. In practice, you have a multiplex network in which each language is one layer of the multiplex.\nA page count exercise. Page counts have a separate collection method, that we discussed and fiddled around back in 32C3.\nIf both exercises are successful, you have a multiplex network of medical pages in Wikipedia, each of which is associated to a number in terms of page counts per unit of time. You could then map this information onto the network, even visually:\n\n\nWhat I like about the approach is that it is relatively\u00a0simple to compute correlation coefficients across different versions of (medical)\u00a0Wikipedia. Correlation betweeen two languages is high if the probability of being connected of two random\u00a0pages in language A, conditional to those two pages being connected in language B, is close to 1. Notice that you could do this without even looking at page counts!\u00a0It\u00a0seems like a lot of work for one day of hacking, but if that's what you want to do, go for it.\u00a0\n","comment_id":"21621","post_id":"5870","user_id":"34","parent_comment_id":"21617","creation_date":"Saturday, February 20, 2016 - 17:12","group_id":"5954"}},{"node":{"title":"Zero Blame","content":"\nSeriously, I hope I didn't give the wrong impression. I can only appreciate the organic way topics naturally adapt, here on ER, depending who's active in the discussions. I wasn't for a while, so it's legit that the topic might have faded in favour of others :)\nI was asking, simply because I had spent some time on the Wikipedia thing and I thought something interesting could be observed (or we could at lease try). I tried giving a hint of my thoughts above, as a reply to @Alberto. I'd be happy to hear what you think.\n\nPeace :)\ns\u00a0 t\u00a0 e\n","comment_id":"21618","post_id":"5870","user_id":"4846","parent_comment_id":"21554","creation_date":"Saturday, February 20, 2016 - 15:58","group_id":"5954"}},{"node":{"title":"Zero Blame","content":"\nSeriously, I hope I didn't give the wrong impression. I can only appreciate the organic way topics naturally adapt, here on ER, depending who's active in the discussions. I wasn't for a while, so it's legit that the topic might have faded in favour of others :)\nI was asking, simply because I had spent some time on the Wikipedia thing and I thought something interesting could be observed (or we could at lease try). I tried giving a hint of my thoughts above, as a reply to @Alberto. I'd be happy to hear what you think.\n\nPeace :)\ns\u00a0 t\u00a0 e\n","comment_id":"21618","post_id":"5870","user_id":"4846","parent_comment_id":"21554","creation_date":"Saturday, February 20, 2016 - 15:58","group_id":"5954"}},{"node":{"title":"Zero Blame","content":"\nSeriously, I hope I didn't give the wrong impression. I can only appreciate the organic way topics naturally adapt, here on ER, depending who's active in the discussions. I wasn't for a while, so it's legit that the topic might have faded in favour of others :)\nI was asking, simply because I had spent some time on the Wikipedia thing and I thought something interesting could be observed (or we could at lease try). I tried giving a hint of my thoughts above, as a reply to @Alberto. I'd be happy to hear what you think.\n\nPeace :)\ns\u00a0 t\u00a0 e\n","comment_id":"21618","post_id":"5870","user_id":"4846","parent_comment_id":"21554","creation_date":"Saturday, February 20, 2016 - 15:58","group_id":"5954"}},{"node":{"title":"Zero Blame","content":"\nSeriously, I hope I didn't give the wrong impression. I can only appreciate the organic way topics naturally adapt, here on ER, depending who's active in the discussions. I wasn't for a while, so it's legit that the topic might have faded in favour of others :)\nI was asking, simply because I had spent some time on the Wikipedia thing and I thought something interesting could be observed (or we could at lease try). I tried giving a hint of my thoughts above, as a reply to @Alberto. I'd be happy to hear what you think.\n\nPeace :)\ns\u00a0 t\u00a0 e\n","comment_id":"21618","post_id":"5870","user_id":"4846","parent_comment_id":"21554","creation_date":"Saturday, February 20, 2016 - 15:58","group_id":"5954"}},{"node":{"title":"Sounds Good","content":"\nHi @Alberto (I have often problems with mentions' hints not appearing, and therefore such mentions not being recognised; is it a known issue or is it just me?)\nWhat you say makes sense and is reassuring. I'm trying to re-organize the several proofs of concept which we put in place with @dora, to have a unified simple tool that we might use to query wikipedia and store responses to a database, for later visualization.\nBased on what we managed to fetch via the API, here's what I was thinking:\n* we have a list of the medicine pages\n* for each page, we can query the pageviews, the links to other wikipedia pages and the translations into other languages\n* for each link to other wikipedia pages, we can tell whether they're medicine pages or not; if they are, we can record they're semantically connected\n* for each page translation we can repeat the above queries and store the relative data\nWith the stored info we could try to analyze:\n* which pages are connected, assuming their sub-network might represent a certain topic\n* which pages (in absolute and relatively to a certain sub-network) have most views\n* for each topic or sub-network, what is the weight of a specific language in the overall page count\nThings we might learn:\n* higher page counts of certain topics might represent higher interest and\/or practice of autodiagnosis for such topics (I'm aware that what's actually relevant is how to tell between the two but we can investigate this further)\n* existance of page translations in certain languages might imply a geographical and\/or ethnographical relevance for certain areas and\/or ethnies\n* higher page counts for a certain topic, in a certain language, might be relevant too\nThinking of Edgesense and ways to use it (maybe) differently than what it was designed for, we might have nodes representing pages as \"semantic knots\" (more than \"bits of conversation\") and connections representing their semantic affinity. Edgesense could then be used to analyze whether the sub-regions it finds match the ones we found as wikipedia's internal links (mentioned above).\nWe could also visualize page counts for each sub-region and each node, both as a global count (including all languages) ans as a \"filtered\" count, per ethnographic group.\nFinally, if we imagine this visualized in three dimensions, we might have:\n* a planar XY mapping, with all the English medicine pages, where all connections are visualized and semantic sub-regions are highlighted (the distributions of nodes in 2D space wouldn't necessarily have a geographical meaning)\n* a Z layering, where at each depth\/height we have a \"language plane\" which shows which of the English pages are translated in a certain language\nConnections would exists across layers, giving a \"volumetric\" representation of medicine semantic networks.\nI guess this last bit might sound particularly abstract or confusing, until I manage to sketch a graphic prototype. I hope I'll be able to do it soon, on paper at least, to try explain the idea a bit better.\nIf anything of what I wrote makes sense to any of you, let me know :)\n","comment_id":"21617","post_id":"5870","user_id":"4846","parent_comment_id":"21576","creation_date":"Saturday, February 20, 2016 - 15:45","group_id":"5954"}},{"node":{"title":"Sounds Good","content":"\nHi @Alberto (I have often problems with mentions' hints not appearing, and therefore such mentions not being recognised; is it a known issue or is it just me?)\nWhat you say makes sense and is reassuring. I'm trying to re-organize the several proofs of concept which we put in place with @dora, to have a unified simple tool that we might use to query wikipedia and store responses to a database, for later visualization.\nBased on what we managed to fetch via the API, here's what I was thinking:\n* we have a list of the medicine pages\n* for each page, we can query the pageviews, the links to other wikipedia pages and the translations into other languages\n* for each link to other wikipedia pages, we can tell whether they're medicine pages or not; if they are, we can record they're semantically connected\n* for each page translation we can repeat the above queries and store the relative data\nWith the stored info we could try to analyze:\n* which pages are connected, assuming their sub-network might represent a certain topic\n* which pages (in absolute and relatively to a certain sub-network) have most views\n* for each topic or sub-network, what is the weight of a specific language in the overall page count\nThings we might learn:\n* higher page counts of certain topics might represent higher interest and\/or practice of autodiagnosis for such topics (I'm aware that what's actually relevant is how to tell between the two but we can investigate this further)\n* existance of page translations in certain languages might imply a geographical and\/or ethnographical relevance for certain areas and\/or ethnies\n* higher page counts for a certain topic, in a certain language, might be relevant too\nThinking of Edgesense and ways to use it (maybe) differently than what it was designed for, we might have nodes representing pages as \"semantic knots\" (more than \"bits of conversation\") and connections representing their semantic affinity. Edgesense could then be used to analyze whether the sub-regions it finds match the ones we found as wikipedia's internal links (mentioned above).\nWe could also visualize page counts for each sub-region and each node, both as a global count (including all languages) ans as a \"filtered\" count, per ethnographic group.\nFinally, if we imagine this visualized in three dimensions, we might have:\n* a planar XY mapping, with all the English medicine pages, where all connections are visualized and semantic sub-regions are highlighted (the distributions of nodes in 2D space wouldn't necessarily have a geographical meaning)\n* a Z layering, where at each depth\/height we have a \"language plane\" which shows which of the English pages are translated in a certain language\nConnections would exists across layers, giving a \"volumetric\" representation of medicine semantic networks.\nI guess this last bit might sound particularly abstract or confusing, until I manage to sketch a graphic prototype. I hope I'll be able to do it soon, on paper at least, to try explain the idea a bit better.\nIf anything of what I wrote makes sense to any of you, let me know :)\n","comment_id":"21617","post_id":"5870","user_id":"4846","parent_comment_id":"21576","creation_date":"Saturday, February 20, 2016 - 15:45","group_id":"5954"}},{"node":{"title":"Sounds Good","content":"\nHi @Alberto (I have often problems with mentions' hints not appearing, and therefore such mentions not being recognised; is it a known issue or is it just me?)\nWhat you say makes sense and is reassuring. I'm trying to re-organize the several proofs of concept which we put in place with @dora, to have a unified simple tool that we might use to query wikipedia and store responses to a database, for later visualization.\nBased on what we managed to fetch via the API, here's what I was thinking:\n* we have a list of the medicine pages\n* for each page, we can query the pageviews, the links to other wikipedia pages and the translations into other languages\n* for each link to other wikipedia pages, we can tell whether they're medicine pages or not; if they are, we can record they're semantically connected\n* for each page translation we can repeat the above queries and store the relative data\nWith the stored info we could try to analyze:\n* which pages are connected, assuming their sub-network might represent a certain topic\n* which pages (in absolute and relatively to a certain sub-network) have most views\n* for each topic or sub-network, what is the weight of a specific language in the overall page count\nThings we might learn:\n* higher page counts of certain topics might represent higher interest and\/or practice of autodiagnosis for such topics (I'm aware that what's actually relevant is how to tell between the two but we can investigate this further)\n* existance of page translations in certain languages might imply a geographical and\/or ethnographical relevance for certain areas and\/or ethnies\n* higher page counts for a certain topic, in a certain language, might be relevant too\nThinking of Edgesense and ways to use it (maybe) differently than what it was designed for, we might have nodes representing pages as \"semantic knots\" (more than \"bits of conversation\") and connections representing their semantic affinity. Edgesense could then be used to analyze whether the sub-regions it finds match the ones we found as wikipedia's internal links (mentioned above).\nWe could also visualize page counts for each sub-region and each node, both as a global count (including all languages) ans as a \"filtered\" count, per ethnographic group.\nFinally, if we imagine this visualized in three dimensions, we might have:\n* a planar XY mapping, with all the English medicine pages, where all connections are visualized and semantic sub-regions are highlighted (the distributions of nodes in 2D space wouldn't necessarily have a geographical meaning)\n* a Z layering, where at each depth\/height we have a \"language plane\" which shows which of the English pages are translated in a certain language\nConnections would exists across layers, giving a \"volumetric\" representation of medicine semantic networks.\nI guess this last bit might sound particularly abstract or confusing, until I manage to sketch a graphic prototype. I hope I'll be able to do it soon, on paper at least, to try explain the idea a bit better.\nIf anything of what I wrote makes sense to any of you, let me know :)\n","comment_id":"21617","post_id":"5870","user_id":"4846","parent_comment_id":"21576","creation_date":"Saturday, February 20, 2016 - 15:45","group_id":"5954"}},{"node":{"title":"Sounds Good","content":"\nHi @Alberto (I have often problems with mentions' hints not appearing, and therefore such mentions not being recognised; is it a known issue or is it just me?)\nWhat you say makes sense and is reassuring. I'm trying to re-organize the several proofs of concept which we put in place with @dora, to have a unified simple tool that we might use to query wikipedia and store responses to a database, for later visualization.\nBased on what we managed to fetch via the API, here's what I was thinking:\n* we have a list of the medicine pages\n* for each page, we can query the pageviews, the links to other wikipedia pages and the translations into other languages\n* for each link to other wikipedia pages, we can tell whether they're medicine pages or not; if they are, we can record they're semantically connected\n* for each page translation we can repeat the above queries and store the relative data\nWith the stored info we could try to analyze:\n* which pages are connected, assuming their sub-network might represent a certain topic\n* which pages (in absolute and relatively to a certain sub-network) have most views\n* for each topic or sub-network, what is the weight of a specific language in the overall page count\nThings we might learn:\n* higher page counts of certain topics might represent higher interest and\/or practice of autodiagnosis for such topics (I'm aware that what's actually relevant is how to tell between the two but we can investigate this further)\n* existance of page translations in certain languages might imply a geographical and\/or ethnographical relevance for certain areas and\/or ethnies\n* higher page counts for a certain topic, in a certain language, might be relevant too\nThinking of Edgesense and ways to use it (maybe) differently than what it was designed for, we might have nodes representing pages as \"semantic knots\" (more than \"bits of conversation\") and connections representing their semantic affinity. Edgesense could then be used to analyze whether the sub-regions it finds match the ones we found as wikipedia's internal links (mentioned above).\nWe could also visualize page counts for each sub-region and each node, both as a global count (including all languages) ans as a \"filtered\" count, per ethnographic group.\nFinally, if we imagine this visualized in three dimensions, we might have:\n* a planar XY mapping, with all the English medicine pages, where all connections are visualized and semantic sub-regions are highlighted (the distributions of nodes in 2D space wouldn't necessarily have a geographical meaning)\n* a Z layering, where at each depth\/height we have a \"language plane\" which shows which of the English pages are translated in a certain language\nConnections would exists across layers, giving a \"volumetric\" representation of medicine semantic networks.\nI guess this last bit might sound particularly abstract or confusing, until I manage to sketch a graphic prototype. I hope I'll be able to do it soon, on paper at least, to try explain the idea a bit better.\nIf anything of what I wrote makes sense to any of you, let me know :)\n","comment_id":"21617","post_id":"5870","user_id":"4846","parent_comment_id":"21576","creation_date":"Saturday, February 20, 2016 - 15:45","group_id":"5954"}},{"node":{"title":"Paper prototypes, yeah!","content":"\nHi @alessandro-contini,\nplease join, I'll be more than happy to have you on board, I am most sure you can contribute with great design ideas and\/or improvements, and even paper mock-up!\nd3 is so great, would be nice to have some of our stuff put up on the web too.\nSee you in Brussels next week\nGuy\n","comment_id":"21582","post_id":"5870","user_id":"6399","parent_comment_id":"21570","creation_date":"Friday, February 19, 2016 - 16:38","group_id":"5954"}},{"node":{"title":"Paper prototypes, yeah!","content":"\nHi @alessandro-contini,\nplease join, I'll be more than happy to have you on board, I am most sure you can contribute with great design ideas and\/or improvements, and even paper mock-up!\nd3 is so great, would be nice to have some of our stuff put up on the web too.\nSee you in Brussels next week\nGuy\n","comment_id":"21582","post_id":"5870","user_id":"6399","parent_comment_id":"21570","creation_date":"Friday, February 19, 2016 - 16:38","group_id":"5954"}},{"node":{"title":"Paper prototypes, yeah!","content":"\nHi @alessandro-contini,\nplease join, I'll be more than happy to have you on board, I am most sure you can contribute with great design ideas and\/or improvements, and even paper mock-up!\nd3 is so great, would be nice to have some of our stuff put up on the web too.\nSee you in Brussels next week\nGuy\n","comment_id":"21582","post_id":"5870","user_id":"6399","parent_comment_id":"21570","creation_date":"Friday, February 19, 2016 - 16:38","group_id":"5954"}},{"node":{"title":"Paper prototypes, yeah!","content":"\nHi @alessandro-contini,\nplease join, I'll be more than happy to have you on board, I am most sure you can contribute with great design ideas and\/or improvements, and even paper mock-up!\nd3 is so great, would be nice to have some of our stuff put up on the web too.\nSee you in Brussels next week\nGuy\n","comment_id":"21582","post_id":"5870","user_id":"6399","parent_comment_id":"21570","creation_date":"Friday, February 19, 2016 - 16:38","group_id":"5954"}},{"node":{"title":"But, hackathon","content":"\n@MoE, to what @melancon\u00a0writes I would like to add two\u00a0things.\nFirst, this is a hackathon, and that means we enjoy a lot of freedom. If you have done preparatory work on Wikipedia data, you are more than welcome to lead a track on Wikipedia data! We'll treat it as we\u00a0treat the other tracks \u2013 in fact, I might drop my quality\u00a0challenge and join it myself. We also reserve the right to keep hacking into Sunday \u2013 I'll definitely do it if we really get going.\nSecond, the time limitations will be mitigated by several factors. The first one is good preparation \u2013 join the MoN4 call right now to find out more. \u00a0The second one is the usual trick of all hackathons: we just stay in touch (through GitHub and other channels) and finish our work in remote. The third one is the LOTE5 freedom that I mentioned above. We should be OK.\n","comment_id":"21576","post_id":"5870","user_id":"34","parent_comment_id":"21549","creation_date":"Friday, February 19, 2016 - 15:09","group_id":"5954"}},{"node":{"title":"But, hackathon","content":"\n@MoE, to what @melancon\u00a0writes I would like to add two\u00a0things.\nFirst, this is a hackathon, and that means we enjoy a lot of freedom. If you have done preparatory work on Wikipedia data, you are more than welcome to lead a track on Wikipedia data! We'll treat it as we\u00a0treat the other tracks \u2013 in fact, I might drop my quality\u00a0challenge and join it myself. We also reserve the right to keep hacking into Sunday \u2013 I'll definitely do it if we really get going.\nSecond, the time limitations will be mitigated by several factors. The first one is good preparation \u2013 join the MoN4 call right now to find out more. \u00a0The second one is the usual trick of all hackathons: we just stay in touch (through GitHub and other channels) and finish our work in remote. The third one is the LOTE5 freedom that I mentioned above. We should be OK.\n","comment_id":"21576","post_id":"5870","user_id":"34","parent_comment_id":"21549","creation_date":"Friday, February 19, 2016 - 15:09","group_id":"5954"}},{"node":{"title":"But, hackathon","content":"\n@MoE, to what @melancon\u00a0writes I would like to add two\u00a0things.\nFirst, this is a hackathon, and that means we enjoy a lot of freedom. If you have done preparatory work on Wikipedia data, you are more than welcome to lead a track on Wikipedia data! We'll treat it as we\u00a0treat the other tracks \u2013 in fact, I might drop my quality\u00a0challenge and join it myself. We also reserve the right to keep hacking into Sunday \u2013 I'll definitely do it if we really get going.\nSecond, the time limitations will be mitigated by several factors. The first one is good preparation \u2013 join the MoN4 call right now to find out more. \u00a0The second one is the usual trick of all hackathons: we just stay in touch (through GitHub and other channels) and finish our work in remote. The third one is the LOTE5 freedom that I mentioned above. We should be OK.\n","comment_id":"21576","post_id":"5870","user_id":"34","parent_comment_id":"21549","creation_date":"Friday, February 19, 2016 - 15:09","group_id":"5954"}},{"node":{"title":"But, hackathon","content":"\n@MoE, to what @melancon\u00a0writes I would like to add two\u00a0things.\nFirst, this is a hackathon, and that means we enjoy a lot of freedom. If you have done preparatory work on Wikipedia data, you are more than welcome to lead a track on Wikipedia data! We'll treat it as we\u00a0treat the other tracks \u2013 in fact, I might drop my quality\u00a0challenge and join it myself. We also reserve the right to keep hacking into Sunday \u2013 I'll definitely do it if we really get going.\nSecond, the time limitations will be mitigated by several factors. The first one is good preparation \u2013 join the MoN4 call right now to find out more. \u00a0The second one is the usual trick of all hackathons: we just stay in touch (through GitHub and other channels) and finish our work in remote. The third one is the LOTE5 freedom that I mentioned above. We should be OK.\n","comment_id":"21576","post_id":"5870","user_id":"34","parent_comment_id":"21549","creation_date":"Friday, February 19, 2016 - 15:09","group_id":"5954"}},{"node":{"title":"my skills","content":"\nHello!\nI'd like to attend the session and I think my skillset will be a good fit for the viz or interpretation team:\n- paper prototyping \/ brainstorming\n- D3js (HTML, CSS)\nLooking forward to join and hack :)\n","comment_id":"21570","post_id":"5870","user_id":"8459","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 14:01","group_id":"5954"}},{"node":{"title":"my skills","content":"\nHello!\nI'd like to attend the session and I think my skillset will be a good fit for the viz or interpretation team:\n- paper prototyping \/ brainstorming\n- D3js (HTML, CSS)\nLooking forward to join and hack :)\n","comment_id":"21570","post_id":"5870","user_id":"8459","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 14:01","group_id":"5954"}},{"node":{"title":"my skills","content":"\nHello!\nI'd like to attend the session and I think my skillset will be a good fit for the viz or interpretation team:\n- paper prototyping \/ brainstorming\n- D3js (HTML, CSS)\nLooking forward to join and hack :)\n","comment_id":"21570","post_id":"5870","user_id":"8459","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 14:01","group_id":"5954"}},{"node":{"title":"my skills","content":"\nHello!\nI'd like to attend the session and I think my skillset will be a good fit for the viz or interpretation team:\n- paper prototyping \/ brainstorming\n- D3js (HTML, CSS)\nLooking forward to join and hack :)\n","comment_id":"21570","post_id":"5870","user_id":"8459","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 14:01","group_id":"5954"}},{"node":{"title":"Blame it on me","content":"\nHi @MoE,\nyou are right, we decided in the end not to include anything about Wikipedia\/data in the final program,\nmainly because we feared there wouldn't be much to investigate. The motto for MoN is to have clear domain questions together with data, and then mine and visualize the data in ways that can help refine the questions, then iterate until you reach some sort of answers.\nWe had also included the EdgeRyders conversation data from the beginning, in order to also have a chance to look at this type of data -- although what we have for the moment is less concerned with care. It is that type of data OpenCare has planned to deal with (people interacting and discussing issues -> socio-semantic network).\nPagecounts did not seem to offer a tangible\u00a0opportunity to look at how people perform self-diagnosis. So we (@Alberto and I) had to decide not to include them in the final MoN program.\n--\nNow, regarding your comment on the risk of being \"shrinked\" by time ... well, it is real. Previous\u00a0MoN sessions expanded over two full days. This time, we had to cope with lots of constraints both on the OpenCare and LOTE5 side. To help with this, I will make data available later today, hopefully with some code snippets, so we can save time and still do some work.\nHope this helps.\n","comment_id":"21554","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 08:00","group_id":"5954"}},{"node":{"title":"Blame it on me","content":"\nHi @MoE,\nyou are right, we decided in the end not to include anything about Wikipedia\/data in the final program,\nmainly because we feared there wouldn't be much to investigate. The motto for MoN is to have clear domain questions together with data, and then mine and visualize the data in ways that can help refine the questions, then iterate until you reach some sort of answers.\nWe had also included the EdgeRyders conversation data from the beginning, in order to also have a chance to look at this type of data -- although what we have for the moment is less concerned with care. It is that type of data OpenCare has planned to deal with (people interacting and discussing issues -> socio-semantic network).\nPagecounts did not seem to offer a tangible\u00a0opportunity to look at how people perform self-diagnosis. So we (@Alberto and I) had to decide not to include them in the final MoN program.\n--\nNow, regarding your comment on the risk of being \"shrinked\" by time ... well, it is real. Previous\u00a0MoN sessions expanded over two full days. This time, we had to cope with lots of constraints both on the OpenCare and LOTE5 side. To help with this, I will make data available later today, hopefully with some code snippets, so we can save time and still do some work.\nHope this helps.\n","comment_id":"21554","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 08:00","group_id":"5954"}},{"node":{"title":"Blame it on me","content":"\nHi @MoE,\nyou are right, we decided in the end not to include anything about Wikipedia\/data in the final program,\nmainly because we feared there wouldn't be much to investigate. The motto for MoN is to have clear domain questions together with data, and then mine and visualize the data in ways that can help refine the questions, then iterate until you reach some sort of answers.\nWe had also included the EdgeRyders conversation data from the beginning, in order to also have a chance to look at this type of data -- although what we have for the moment is less concerned with care. It is that type of data OpenCare has planned to deal with (people interacting and discussing issues -> socio-semantic network).\nPagecounts did not seem to offer a tangible\u00a0opportunity to look at how people perform self-diagnosis. So we (@Alberto and I) had to decide not to include them in the final MoN program.\n--\nNow, regarding your comment on the risk of being \"shrinked\" by time ... well, it is real. Previous\u00a0MoN sessions expanded over two full days. This time, we had to cope with lots of constraints both on the OpenCare and LOTE5 side. To help with this, I will make data available later today, hopefully with some code snippets, so we can save time and still do some work.\nHope this helps.\n","comment_id":"21554","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 08:00","group_id":"5954"}},{"node":{"title":"Blame it on me","content":"\nHi @MoE,\nyou are right, we decided in the end not to include anything about Wikipedia\/data in the final program,\nmainly because we feared there wouldn't be much to investigate. The motto for MoN is to have clear domain questions together with data, and then mine and visualize the data in ways that can help refine the questions, then iterate until you reach some sort of answers.\nWe had also included the EdgeRyders conversation data from the beginning, in order to also have a chance to look at this type of data -- although what we have for the moment is less concerned with care. It is that type of data OpenCare has planned to deal with (people interacting and discussing issues -> socio-semantic network).\nPagecounts did not seem to offer a tangible\u00a0opportunity to look at how people perform self-diagnosis. So we (@Alberto and I) had to decide not to include them in the final MoN program.\n--\nNow, regarding your comment on the risk of being \"shrinked\" by time ... well, it is real. Previous\u00a0MoN sessions expanded over two full days. This time, we had to cope with lots of constraints both on the OpenCare and LOTE5 side. To help with this, I will make data available later today, hopefully with some code snippets, so we can save time and still do some work.\nHope this helps.\n","comment_id":"21554","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 08:00","group_id":"5954"}},{"node":{"title":"A bit confused","content":"\nI finally took some time to read thorugh the most recent program and comments and I am a bit confused...\nWe started having a plan, with @dora, about what could be done with the Wikipedia data we managed to mine but I see there's no mention of Wikipedia at all, in this page, so I was wondering whether you're giving up on that end or it was just left aside for the moment, or... ?\nAgain, I'll be catching up with the code stuff this weekend. In the meanwhile, I'd ask: are you planing to have just 2 hours of prototyping for the proof of concept? Ain't it a bit too shrinked?\nI see that properly structuring ideas is the most relevant aspect of the hackathon, but I fear that not having enough time to make them into proper, working pieces of code might risk to end up producing mainly fluff... I hope I won't sound harsh in saying this, I would just hear what's your take\n","comment_id":"21549","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 01:01","group_id":"5954"}},{"node":{"title":"A bit confused","content":"\nI finally took some time to read thorugh the most recent program and comments and I am a bit confused...\nWe started having a plan, with @dora, about what could be done with the Wikipedia data we managed to mine but I see there's no mention of Wikipedia at all, in this page, so I was wondering whether you're giving up on that end or it was just left aside for the moment, or... ?\nAgain, I'll be catching up with the code stuff this weekend. In the meanwhile, I'd ask: are you planing to have just 2 hours of prototyping for the proof of concept? Ain't it a bit too shrinked?\nI see that properly structuring ideas is the most relevant aspect of the hackathon, but I fear that not having enough time to make them into proper, working pieces of code might risk to end up producing mainly fluff... I hope I won't sound harsh in saying this, I would just hear what's your take\n","comment_id":"21549","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 01:01","group_id":"5954"}},{"node":{"title":"A bit confused","content":"\nI finally took some time to read thorugh the most recent program and comments and I am a bit confused...\nWe started having a plan, with @dora, about what could be done with the Wikipedia data we managed to mine but I see there's no mention of Wikipedia at all, in this page, so I was wondering whether you're giving up on that end or it was just left aside for the moment, or... ?\nAgain, I'll be catching up with the code stuff this weekend. In the meanwhile, I'd ask: are you planing to have just 2 hours of prototyping for the proof of concept? Ain't it a bit too shrinked?\nI see that properly structuring ideas is the most relevant aspect of the hackathon, but I fear that not having enough time to make them into proper, working pieces of code might risk to end up producing mainly fluff... I hope I won't sound harsh in saying this, I would just hear what's your take\n","comment_id":"21549","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 01:01","group_id":"5954"}},{"node":{"title":"A bit confused","content":"\nI finally took some time to read thorugh the most recent program and comments and I am a bit confused...\nWe started having a plan, with @dora, about what could be done with the Wikipedia data we managed to mine but I see there's no mention of Wikipedia at all, in this page, so I was wondering whether you're giving up on that end or it was just left aside for the moment, or... ?\nAgain, I'll be catching up with the code stuff this weekend. In the meanwhile, I'd ask: are you planing to have just 2 hours of prototyping for the proof of concept? Ain't it a bit too shrinked?\nI see that properly structuring ideas is the most relevant aspect of the hackathon, but I fear that not having enough time to make them into proper, working pieces of code might risk to end up producing mainly fluff... I hope I won't sound harsh in saying this, I would just hear what's your take\n","comment_id":"21549","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Friday, February 19, 2016 - 01:01","group_id":"5954"}},{"node":{"title":"Walk ins","content":"\nMost people haven't signed up for sessions.\u00a0We expect >130 people to come to LOTE at one point or another (hosts included).\nCome Friday morning, everyone who is there (say 60-70:\u00a0we don't have precise information) will pick between this session and the one on open source collaboration.\u00a0Seeing how much more popular this one is, you might end up with a crowded room. Just saying, have chairs prepared to be moved around.\n","comment_id":"21544","post_id":"5840","user_id":"32","parent_comment_id":"21542","creation_date":"Thursday, February 18, 2016 - 20:44","group_id":"5954"}},{"node":{"title":"Walk ins","content":"\nMost people haven't signed up for sessions.\u00a0We expect >130 people to come to LOTE at one point or another (hosts included).\nCome Friday morning, everyone who is there (say 60-70:\u00a0we don't have precise information) will pick between this session and the one on open source collaboration.\u00a0Seeing how much more popular this one is, you might end up with a crowded room. Just saying, have chairs prepared to be moved around.\n","comment_id":"21544","post_id":"5840","user_id":"32","parent_comment_id":"21542","creation_date":"Thursday, February 18, 2016 - 20:44","group_id":"5954"}},{"node":{"title":"Walk ins","content":"\nMost people haven't signed up for sessions.\u00a0We expect >130 people to come to LOTE at one point or another (hosts included).\nCome Friday morning, everyone who is there (say 60-70:\u00a0we don't have precise information) will pick between this session and the one on open source collaboration.\u00a0Seeing how much more popular this one is, you might end up with a crowded room. Just saying, have chairs prepared to be moved around.\n","comment_id":"21544","post_id":"5840","user_id":"32","parent_comment_id":"21542","creation_date":"Thursday, February 18, 2016 - 20:44","group_id":"5954"}},{"node":{"title":"Huh?","content":"\nBased on what?\n\nOn the Edgeryders event: 23 registered\nOn the Facebook event, 40 registered \u2013 but, as always, some people will not show up. I know for sure Medhin Paolos is not coming, for example. Maria Wahlberg, same thing.\u00a0\n\nWhat information sources do you have? I ask so that we can take steps.\n","comment_id":"21542","post_id":"5840","user_id":"34","parent_comment_id":"21541","creation_date":"Thursday, February 18, 2016 - 20:14","group_id":"5954"}},{"node":{"title":"Huh?","content":"\nBased on what?\n\nOn the Edgeryders event: 23 registered\nOn the Facebook event, 40 registered \u2013 but, as always, some people will not show up. I know for sure Medhin Paolos is not coming, for example. Maria Wahlberg, same thing.\u00a0\n\nWhat information sources do you have? I ask so that we can take steps.\n","comment_id":"21542","post_id":"5840","user_id":"34","parent_comment_id":"21541","creation_date":"Thursday, February 18, 2016 - 20:14","group_id":"5954"}},{"node":{"title":"Huh?","content":"\nBased on what?\n\nOn the Edgeryders event: 23 registered\nOn the Facebook event, 40 registered \u2013 but, as always, some people will not show up. I know for sure Medhin Paolos is not coming, for example. Maria Wahlberg, same thing.\u00a0\n\nWhat information sources do you have? I ask so that we can take steps.\n","comment_id":"21542","post_id":"5840","user_id":"34","parent_comment_id":"21541","creation_date":"Thursday, February 18, 2016 - 20:14","group_id":"5954"}},{"node":{"title":"Most popular session. 40 places ceiling?","content":"\nJust a quick fyi. @Alberto it seems there are plenty of people coming over to LOTE for the Collaborative inclusion workshop\u00a0alone.\u00a0I suggest you have a clear policy at the door or at least allow the morning session more people in. Maybe I'm wrong, but we need to be prepared.\n","comment_id":"21541","post_id":"5840","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 19:57","group_id":"5954"}},{"node":{"title":"Most popular session. 40 places ceiling?","content":"\nJust a quick fyi. @Alberto it seems there are plenty of people coming over to LOTE for the Collaborative inclusion workshop\u00a0alone.\u00a0I suggest you have a clear policy at the door or at least allow the morning session more people in. Maybe I'm wrong, but we need to be prepared.\n","comment_id":"21541","post_id":"5840","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 19:57","group_id":"5954"}},{"node":{"title":"Most popular session. 40 places ceiling?","content":"\nJust a quick fyi. @Alberto it seems there are plenty of people coming over to LOTE for the Collaborative inclusion workshop\u00a0alone.\u00a0I suggest you have a clear policy at the door or at least allow the morning session more people in. Maybe I'm wrong, but we need to be prepared.\n","comment_id":"21541","post_id":"5840","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 19:57","group_id":"5954"}},{"node":{"title":"Resource: a conversation network","content":"\nAnother useful reading if we intend to work with Edgeryders data from spring 2014 is this Spot the Futue report containing visualizations of the\u00a0network:\u00a0http:\/\/www.renoust.com\/pub\/STFNetworkReport.pdf\nI'm not adding it directly in the wiki because I'm not yet sure that the focus will be on this conversation. It's what I understood from the event page.\u00a0Looking forward!\n","comment_id":"21538","post_id":"5884","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 19:12","group_id":"5954"}},{"node":{"title":"Resource: a conversation network","content":"\nAnother useful reading if we intend to work with Edgeryders data from spring 2014 is this Spot the Futue report containing visualizations of the\u00a0network:\u00a0http:\/\/www.renoust.com\/pub\/STFNetworkReport.pdf\nI'm not adding it directly in the wiki because I'm not yet sure that the focus will be on this conversation. It's what I understood from the event page.\u00a0Looking forward!\n","comment_id":"21538","post_id":"5884","user_id":"32","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 19:12","group_id":"5954"}},{"node":{"title":"Open","content":"\n... so, on Google Hangout, because you can join them with just the link. \u00a0No Skype.\u00a0\n","comment_id":"21524","post_id":"5870","user_id":"34","parent_comment_id":"21506","creation_date":"Thursday, February 18, 2016 - 17:36","group_id":"5954"}},{"node":{"title":"Open","content":"\n... so, on Google Hangout, because you can join them with just the link. \u00a0No Skype.\u00a0\n","comment_id":"21524","post_id":"5870","user_id":"34","parent_comment_id":"21506","creation_date":"Thursday, February 18, 2016 - 17:36","group_id":"5954"}},{"node":{"title":"Open","content":"\n... so, on Google Hangout, because you can join them with just the link. \u00a0No Skype.\u00a0\n","comment_id":"21524","post_id":"5870","user_id":"34","parent_comment_id":"21506","creation_date":"Thursday, February 18, 2016 - 17:36","group_id":"5954"}},{"node":{"title":"Open","content":"\n... so, on Google Hangout, because you can join them with just the link. \u00a0No Skype.\u00a0\n","comment_id":"21524","post_id":"5870","user_id":"34","parent_comment_id":"21506","creation_date":"Thursday, February 18, 2016 - 17:36","group_id":"5954"}},{"node":{"title":"How do I extract the STF posts","content":"\nIs there a tag or something I can grab so I know a post is relevant to STF.\nI also need to be helped on the ethno posts, which for now I cannot really exploit.\nWe'll talk about all this tomorrow I guess.\n","comment_id":"21517","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"How do I extract the STF posts","content":"\nIs there a tag or something I can grab so I know a post is relevant to STF.\nI also need to be helped on the ethno posts, which for now I cannot really exploit.\nWe'll talk about all this tomorrow I guess.\n","comment_id":"21517","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"How do I extract the STF posts","content":"\nIs there a tag or something I can grab so I know a post is relevant to STF.\nI also need to be helped on the ethno posts, which for now I cannot really exploit.\nWe'll talk about all this tomorrow I guess.\n","comment_id":"21517","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"How do I extract the STF posts","content":"\nIs there a tag or something I can grab so I know a post is relevant to STF.\nI also need to be helped on the ethno posts, which for now I cannot really exploit.\nWe'll talk about all this tomorrow I guess.\n","comment_id":"21517","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 15:36","group_id":"5954"}},{"node":{"title":"Ok","content":"\nI did it for the LOTE event.\nUnfortunatly I have to fly back to Milan on Friday evening...\nLucia will stay for MoN till Sat morning.\n\u00a0\n\u00a0\n","comment_id":"21509","post_id":"5870","user_id":"8156","parent_comment_id":"21198","creation_date":"Thursday, February 18, 2016 - 10:58","group_id":"5954"}},{"node":{"title":"Ok","content":"\nI did it for the LOTE event.\nUnfortunatly I have to fly back to Milan on Friday evening...\nLucia will stay for MoN till Sat morning.\n\u00a0\n\u00a0\n","comment_id":"21509","post_id":"5870","user_id":"8156","parent_comment_id":"21198","creation_date":"Thursday, February 18, 2016 - 10:58","group_id":"5954"}},{"node":{"title":"Ok","content":"\nI did it for the LOTE event.\nUnfortunatly I have to fly back to Milan on Friday evening...\nLucia will stay for MoN till Sat morning.\n\u00a0\n\u00a0\n","comment_id":"21509","post_id":"5870","user_id":"8156","parent_comment_id":"21198","creation_date":"Thursday, February 18, 2016 - 10:58","group_id":"5954"}},{"node":{"title":"Ok","content":"\nI did it for the LOTE event.\nUnfortunatly I have to fly back to Milan on Friday evening...\nLucia will stay for MoN till Sat morning.\n\u00a0\n\u00a0\n","comment_id":"21509","post_id":"5870","user_id":"8156","parent_comment_id":"21198","creation_date":"Thursday, February 18, 2016 - 10:58","group_id":"5954"}},{"node":{"title":"Friday 3pm -- ok","content":"\n3pm - 4pm and more if necessary.\nI guess you had a look at the (tentative) agenda, and also saw I wish\u00a0to give MoN4 a participatory design workshop twist.\nDo we open the call to all, or keep it between facilitators (@Hazem?), or us two?\n","comment_id":"21506","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 07:22","group_id":"5954"}},{"node":{"title":"Friday 3pm -- ok","content":"\n3pm - 4pm and more if necessary.\nI guess you had a look at the (tentative) agenda, and also saw I wish\u00a0to give MoN4 a participatory design workshop twist.\nDo we open the call to all, or keep it between facilitators (@Hazem?), or us two?\n","comment_id":"21506","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 07:22","group_id":"5954"}},{"node":{"title":"Friday 3pm -- ok","content":"\n3pm - 4pm and more if necessary.\nI guess you had a look at the (tentative) agenda, and also saw I wish\u00a0to give MoN4 a participatory design workshop twist.\nDo we open the call to all, or keep it between facilitators (@Hazem?), or us two?\n","comment_id":"21506","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 07:22","group_id":"5954"}},{"node":{"title":"Friday 3pm -- ok","content":"\n3pm - 4pm and more if necessary.\nI guess you had a look at the (tentative) agenda, and also saw I wish\u00a0to give MoN4 a participatory design workshop twist.\nDo we open the call to all, or keep it between facilitators (@Hazem?), or us two?\n","comment_id":"21506","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 07:22","group_id":"5954"}},{"node":{"title":"I'm in","content":"\nHi everybody,\n\u00a0 I'm sorry for the long silence but it's been a long any busy period for me.\nI just wanted to confirm I'll be attending MoN4 with @dora (we have accomodation sorted).\nWe also made some progress with python, relatively to my last updates on ER, but not recently. I'm planning to get back to the code next weekend and I'm confident I'll be able to give you a better update, then.\nI can't wait to meet you in person :)\nCheers,\ns\u00a0 t\u00a0 e\n","comment_id":"21504","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 00:34","group_id":"5954"}},{"node":{"title":"I'm in","content":"\nHi everybody,\n\u00a0 I'm sorry for the long silence but it's been a long any busy period for me.\nI just wanted to confirm I'll be attending MoN4 with @dora (we have accomodation sorted).\nWe also made some progress with python, relatively to my last updates on ER, but not recently. I'm planning to get back to the code next weekend and I'm confident I'll be able to give you a better update, then.\nI can't wait to meet you in person :)\nCheers,\ns\u00a0 t\u00a0 e\n","comment_id":"21504","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 00:34","group_id":"5954"}},{"node":{"title":"I'm in","content":"\nHi everybody,\n\u00a0 I'm sorry for the long silence but it's been a long any busy period for me.\nI just wanted to confirm I'll be attending MoN4 with @dora (we have accomodation sorted).\nWe also made some progress with python, relatively to my last updates on ER, but not recently. I'm planning to get back to the code next weekend and I'm confident I'll be able to give you a better update, then.\nI can't wait to meet you in person :)\nCheers,\ns\u00a0 t\u00a0 e\n","comment_id":"21504","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 00:34","group_id":"5954"}},{"node":{"title":"I'm in","content":"\nHi everybody,\n\u00a0 I'm sorry for the long silence but it's been a long any busy period for me.\nI just wanted to confirm I'll be attending MoN4 with @dora (we have accomodation sorted).\nWe also made some progress with python, relatively to my last updates on ER, but not recently. I'm planning to get back to the code next weekend and I'm confident I'll be able to give you a better update, then.\nI can't wait to meet you in person :)\nCheers,\ns\u00a0 t\u00a0 e\n","comment_id":"21504","post_id":"5870","user_id":"4846","parent_comment_id":"0","creation_date":"Thursday, February 18, 2016 - 00:34","group_id":"5954"}},{"node":{"title":"MoN4 stage-setting conference call! ","content":"\n@melancon, are you free for an hour on Friday, say 15 to 16? I would like to touch base with you on the finishing touches to MoN4.\n","comment_id":"21502","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 20:46","group_id":"5954"}},{"node":{"title":"MoN4 stage-setting conference call! ","content":"\n@melancon, are you free for an hour on Friday, say 15 to 16? I would like to touch base with you on the finishing touches to MoN4.\n","comment_id":"21502","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 20:46","group_id":"5954"}},{"node":{"title":"MoN4 stage-setting conference call! ","content":"\n@melancon, are you free for an hour on Friday, say 15 to 16? I would like to touch base with you on the finishing touches to MoN4.\n","comment_id":"21502","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 20:46","group_id":"5954"}},{"node":{"title":"MoN4 stage-setting conference call! ","content":"\n@melancon, are you free for an hour on Friday, say 15 to 16? I would like to touch base with you on the finishing touches to MoN4.\n","comment_id":"21502","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 20:46","group_id":"5954"}},{"node":{"title":"It's all in the interaction","content":"\nHi @RossellaB, good to see you are playing with Detangler.\nFirst thing you need to know is that nodes on the left panel (substrates) are the main focus. Those substrates relate to one another through nodes on the right panel (catalysts). Catalysts are the \"reasons\" why substrates relate to one another. In the demo example, people get connected because they co-participate to political lodges (you may have recognized names from the so-called Paul Revere night ride from the American revolution). The quest is to try to figure out, for instance, who was in a position to reach all of those guys pretty quickly (in order to organize a mutiny before the British authority could counterfeit them).\nThe x, y position of nodes is decided in the following way: nodes on the right panel are displayed using a force-directed layout (ask me if you have no idea what that is). There is no absolute meaning in the x or y value, nodes are just positioned so as to have a readable display.\u00a0Nodes on the left panel are positionned according to how they relate to nodes in the right panel. The layout attemps at mimicking the layout on the left, substrates are positionned \"around\" the catalysts to which they correspond (although catalysts are not embedded in the panel. The reason is to make the selection more natural: when you select substrates\u00a0at the top in the left panel, you may expect the corresponding catalysts to be located at the top in the right panel.\nThe main feature is the easy selection of substrates or catalyst\u00a0using the lasso.\nWe'll be using Detangler with substrates=people and catalysts=topics, for instance.\nEnjoy!\n","comment_id":"21490","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 14:17","group_id":"5954"}},{"node":{"title":"It's all in the interaction","content":"\nHi @RossellaB, good to see you are playing with Detangler.\nFirst thing you need to know is that nodes on the left panel (substrates) are the main focus. Those substrates relate to one another through nodes on the right panel (catalysts). Catalysts are the \"reasons\" why substrates relate to one another. In the demo example, people get connected because they co-participate to political lodges (you may have recognized names from the so-called Paul Revere night ride from the American revolution). The quest is to try to figure out, for instance, who was in a position to reach all of those guys pretty quickly (in order to organize a mutiny before the British authority could counterfeit them).\nThe x, y position of nodes is decided in the following way: nodes on the right panel are displayed using a force-directed layout (ask me if you have no idea what that is). There is no absolute meaning in the x or y value, nodes are just positioned so as to have a readable display.\u00a0Nodes on the left panel are positionned according to how they relate to nodes in the right panel. The layout attemps at mimicking the layout on the left, substrates are positionned \"around\" the catalysts to which they correspond (although catalysts are not embedded in the panel. The reason is to make the selection more natural: when you select substrates\u00a0at the top in the left panel, you may expect the corresponding catalysts to be located at the top in the right panel.\nThe main feature is the easy selection of substrates or catalyst\u00a0using the lasso.\nWe'll be using Detangler with substrates=people and catalysts=topics, for instance.\nEnjoy!\n","comment_id":"21490","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 14:17","group_id":"5954"}},{"node":{"title":"It's all in the interaction","content":"\nHi @RossellaB, good to see you are playing with Detangler.\nFirst thing you need to know is that nodes on the left panel (substrates) are the main focus. Those substrates relate to one another through nodes on the right panel (catalysts). Catalysts are the \"reasons\" why substrates relate to one another. In the demo example, people get connected because they co-participate to political lodges (you may have recognized names from the so-called Paul Revere night ride from the American revolution). The quest is to try to figure out, for instance, who was in a position to reach all of those guys pretty quickly (in order to organize a mutiny before the British authority could counterfeit them).\nThe x, y position of nodes is decided in the following way: nodes on the right panel are displayed using a force-directed layout (ask me if you have no idea what that is). There is no absolute meaning in the x or y value, nodes are just positioned so as to have a readable display.\u00a0Nodes on the left panel are positionned according to how they relate to nodes in the right panel. The layout attemps at mimicking the layout on the left, substrates are positionned \"around\" the catalysts to which they correspond (although catalysts are not embedded in the panel. The reason is to make the selection more natural: when you select substrates\u00a0at the top in the left panel, you may expect the corresponding catalysts to be located at the top in the right panel.\nThe main feature is the easy selection of substrates or catalyst\u00a0using the lasso.\nWe'll be using Detangler with substrates=people and catalysts=topics, for instance.\nEnjoy!\n","comment_id":"21490","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 14:17","group_id":"5954"}},{"node":{"title":"It's all in the interaction","content":"\nHi @RossellaB, good to see you are playing with Detangler.\nFirst thing you need to know is that nodes on the left panel (substrates) are the main focus. Those substrates relate to one another through nodes on the right panel (catalysts). Catalysts are the \"reasons\" why substrates relate to one another. In the demo example, people get connected because they co-participate to political lodges (you may have recognized names from the so-called Paul Revere night ride from the American revolution). The quest is to try to figure out, for instance, who was in a position to reach all of those guys pretty quickly (in order to organize a mutiny before the British authority could counterfeit them).\nThe x, y position of nodes is decided in the following way: nodes on the right panel are displayed using a force-directed layout (ask me if you have no idea what that is). There is no absolute meaning in the x or y value, nodes are just positioned so as to have a readable display.\u00a0Nodes on the left panel are positionned according to how they relate to nodes in the right panel. The layout attemps at mimicking the layout on the left, substrates are positionned \"around\" the catalysts to which they correspond (although catalysts are not embedded in the panel. The reason is to make the selection more natural: when you select substrates\u00a0at the top in the left panel, you may expect the corresponding catalysts to be located at the top in the right panel.\nThe main feature is the easy selection of substrates or catalyst\u00a0using the lasso.\nWe'll be using Detangler with substrates=people and catalysts=topics, for instance.\nEnjoy!\n","comment_id":"21490","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 14:17","group_id":"5954"}},{"node":{"title":"Question about Detangler","content":"\nI was having a look at Detangler and I don't understand what the coordinates x and y stand for. I can see scatter plots and bar plots but I don't know what they tell about the network. Can someone help me out?\n","comment_id":"21486","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 12:47","group_id":"5954"}},{"node":{"title":"Question about Detangler","content":"\nI was having a look at Detangler and I don't understand what the coordinates x and y stand for. I can see scatter plots and bar plots but I don't know what they tell about the network. Can someone help me out?\n","comment_id":"21486","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 12:47","group_id":"5954"}},{"node":{"title":"Question about Detangler","content":"\nI was having a look at Detangler and I don't understand what the coordinates x and y stand for. I can see scatter plots and bar plots but I don't know what they tell about the network. Can someone help me out?\n","comment_id":"21486","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 12:47","group_id":"5954"}},{"node":{"title":"Question about Detangler","content":"\nI was having a look at Detangler and I don't understand what the coordinates x and y stand for. I can see scatter plots and bar plots but I don't know what they tell about the network. Can someone help me out?\n","comment_id":"21486","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Wednesday, February 17, 2016 - 12:47","group_id":"5954"}},{"node":{"title":"Thanks Guy! That is certainly","content":"\nThanks Guy! That is certainly true.\n","comment_id":"21481","post_id":"5870","user_id":"8235","parent_comment_id":"21466","creation_date":"Wednesday, February 17, 2016 - 12:07","group_id":"5954"}},{"node":{"title":"Thanks Guy! That is certainly","content":"\nThanks Guy! That is certainly true.\n","comment_id":"21481","post_id":"5870","user_id":"8235","parent_comment_id":"21466","creation_date":"Wednesday, February 17, 2016 - 12:07","group_id":"5954"}},{"node":{"title":"Thanks Guy! That is certainly","content":"\nThanks Guy! That is certainly true.\n","comment_id":"21481","post_id":"5870","user_id":"8235","parent_comment_id":"21466","creation_date":"Wednesday, February 17, 2016 - 12:07","group_id":"5954"}},{"node":{"title":"Thanks Guy! That is certainly","content":"\nThanks Guy! That is certainly true.\n","comment_id":"21481","post_id":"5870","user_id":"8235","parent_comment_id":"21466","creation_date":"Wednesday, February 17, 2016 - 12:07","group_id":"5954"}},{"node":{"title":"Grrrrreat!","content":"\n@RossellaB Do not forget we all were newbies at some point, and will probably remain newbies on so many topics till the end. I am real happy to count you in.\nLooking forward to code in your company :-)\nGuy\n\u00a0\n","comment_id":"21466","post_id":"5870","user_id":"6399","parent_comment_id":"21423","creation_date":"Tuesday, February 16, 2016 - 18:36","group_id":"5954"}},{"node":{"title":"Grrrrreat!","content":"\n@RossellaB Do not forget we all were newbies at some point, and will probably remain newbies on so many topics till the end. I am real happy to count you in.\nLooking forward to code in your company :-)\nGuy\n\u00a0\n","comment_id":"21466","post_id":"5870","user_id":"6399","parent_comment_id":"21423","creation_date":"Tuesday, February 16, 2016 - 18:36","group_id":"5954"}},{"node":{"title":"Grrrrreat!","content":"\n@RossellaB Do not forget we all were newbies at some point, and will probably remain newbies on so many topics till the end. I am real happy to count you in.\nLooking forward to code in your company :-)\nGuy\n\u00a0\n","comment_id":"21466","post_id":"5870","user_id":"6399","parent_comment_id":"21423","creation_date":"Tuesday, February 16, 2016 - 18:36","group_id":"5954"}},{"node":{"title":"Grrrrreat!","content":"\n@RossellaB Do not forget we all were newbies at some point, and will probably remain newbies on so many topics till the end. I am real happy to count you in.\nLooking forward to code in your company :-)\nGuy\n\u00a0\n","comment_id":"21466","post_id":"5870","user_id":"6399","parent_comment_id":"21423","creation_date":"Tuesday, February 16, 2016 - 18:36","group_id":"5954"}},{"node":{"title":"Good","content":"\n@Hazem So you are now officially coordinating the interpretation challenge!\nLooking forward to meet you at LOTE5.\nGuy\n","comment_id":"21465","post_id":"5870","user_id":"6399","parent_comment_id":"21378","creation_date":"Tuesday, February 16, 2016 - 18:34","group_id":"5954"}},{"node":{"title":"Good","content":"\n@Hazem So you are now officially coordinating the interpretation challenge!\nLooking forward to meet you at LOTE5.\nGuy\n","comment_id":"21465","post_id":"5870","user_id":"6399","parent_comment_id":"21378","creation_date":"Tuesday, February 16, 2016 - 18:34","group_id":"5954"}},{"node":{"title":"Good","content":"\n@Hazem So you are now officially coordinating the interpretation challenge!\nLooking forward to meet you at LOTE5.\nGuy\n","comment_id":"21465","post_id":"5870","user_id":"6399","parent_comment_id":"21378","creation_date":"Tuesday, February 16, 2016 - 18:34","group_id":"5954"}},{"node":{"title":"Good","content":"\n@Hazem So you are now officially coordinating the interpretation challenge!\nLooking forward to meet you at LOTE5.\nGuy\n","comment_id":"21465","post_id":"5870","user_id":"6399","parent_comment_id":"21378","creation_date":"Tuesday, February 16, 2016 - 18:34","group_id":"5954"}},{"node":{"title":"The Pressure Cooker (a spin-off)","content":"\nAfter a fairly large detour,\u00a0I'll be doing a \"Pressure Cooker\" workshop on Sunday afternoon. Originally it was part of this event (I think), but it's now a semi-official spin-off. Smaller, shorter and a tiny bit\u00a0wilder.\nIf you are interested, have a look at the event here.\n","comment_id":"21433","post_id":"5787","user_id":"461","parent_comment_id":"0","creation_date":"Monday, February 15, 2016 - 12:09","group_id":"5954"}},{"node":{"title":"The Pressure Cooker (a spin-off)","content":"\nAfter a fairly large detour,\u00a0I'll be doing a \"Pressure Cooker\" workshop on Sunday afternoon. Originally it was part of this event (I think), but it's now a semi-official spin-off. Smaller, shorter and a tiny bit\u00a0wilder.\nIf you are interested, have a look at the event here.\n","comment_id":"21433","post_id":"5787","user_id":"461","parent_comment_id":"0","creation_date":"Monday, February 15, 2016 - 12:09","group_id":"5954"}},{"node":{"title":"The Pressure Cooker (a spin-off)","content":"\nAfter a fairly large detour,\u00a0I'll be doing a \"Pressure Cooker\" workshop on Sunday afternoon. Originally it was part of this event (I think), but it's now a semi-official spin-off. Smaller, shorter and a tiny bit\u00a0wilder.\nIf you are interested, have a look at the event here.\n","comment_id":"21433","post_id":"5787","user_id":"461","parent_comment_id":"0","creation_date":"Monday, February 15, 2016 - 12:09","group_id":"5954"}},{"node":{"title":"Network newbie with graphic and statistics background","content":"\nI am relatively new to networks, but i'm working on a serious project with networks and i have a background in graphic design and in statistics. I can program in R but won't be able to bring a laptop.\nI am particularly interested in the visualisation challenge and looking forward at meeting you all!\n","comment_id":"21423","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Sunday, February 14, 2016 - 22:46","group_id":"5954"}},{"node":{"title":"Network newbie with graphic and statistics background","content":"\nI am relatively new to networks, but i'm working on a serious project with networks and i have a background in graphic design and in statistics. I can program in R but won't be able to bring a laptop.\nI am particularly interested in the visualisation challenge and looking forward at meeting you all!\n","comment_id":"21423","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Sunday, February 14, 2016 - 22:46","group_id":"5954"}},{"node":{"title":"Network newbie with graphic and statistics background","content":"\nI am relatively new to networks, but i'm working on a serious project with networks and i have a background in graphic design and in statistics. I can program in R but won't be able to bring a laptop.\nI am particularly interested in the visualisation challenge and looking forward at meeting you all!\n","comment_id":"21423","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Sunday, February 14, 2016 - 22:46","group_id":"5954"}},{"node":{"title":"Network newbie with graphic and statistics background","content":"\nI am relatively new to networks, but i'm working on a serious project with networks and i have a background in graphic design and in statistics. I can program in R but won't be able to bring a laptop.\nI am particularly interested in the visualisation challenge and looking forward at meeting you all!\n","comment_id":"21423","post_id":"5870","user_id":"8235","parent_comment_id":"0","creation_date":"Sunday, February 14, 2016 - 22:46","group_id":"5954"}},{"node":{"title":"Kirsten and Walter might know, Also Julia herself","content":"\nMaybe ping\u00a0@Kirst3nF,\u00a0@whvholst,\u00a0@Senficon\u00a0on twitter?\u00a0\n","comment_id":"21417","post_id":"5891","user_id":"45","parent_comment_id":"21416","creation_date":"Sunday, February 14, 2016 - 13:47","group_id":"5954"}},{"node":{"title":"Kirsten and Walter might know, Also Julia herself","content":"\nMaybe ping\u00a0@Kirst3nF,\u00a0@whvholst,\u00a0@Senficon\u00a0on twitter?\u00a0\n","comment_id":"21417","post_id":"5891","user_id":"45","parent_comment_id":"21416","creation_date":"Sunday, February 14, 2016 - 13:47","group_id":"5954"}},{"node":{"title":"Kirsten and Walter might know, Also Julia herself","content":"\nMaybe ping\u00a0@Kirst3nF,\u00a0@whvholst,\u00a0@Senficon\u00a0on twitter?\u00a0\n","comment_id":"21417","post_id":"5891","user_id":"45","parent_comment_id":"21416","creation_date":"Sunday, February 14, 2016 - 13:47","group_id":"5954"}},{"node":{"title":"yes, we can give the DIY\/Maker perspective on the topic","content":"Could anyone suggest an article or paper written in human language to understand how Europe is attempting to regulate software transparency? It could help in having a more interesting Q&A if we could read the state of the art of the debate. 5-minutes intervention? Zoe ","comment_id":"21416","post_id":"5891","user_id":"3855","parent_comment_id":"0","creation_date":"Sunday, February 14, 2016 - 12:54","group_id":"5954"}},{"node":{"title":"yes, we can give the DIY\/Maker perspective on the topic","content":"Could anyone suggest an article or paper written in human language to understand how Europe is attempting to regulate software transparency? It could help in having a more interesting Q&A if we could read the state of the art of the debate. 5-minutes intervention? Zoe ","comment_id":"21416","post_id":"5891","user_id":"3855","parent_comment_id":"0","creation_date":"Sunday, February 14, 2016 - 12:54","group_id":"5954"}},{"node":{"title":"yes, we can give the DIY\/Maker perspective on the topic","content":"Could anyone suggest an article or paper written in human language to understand how Europe is attempting to regulate software transparency? It could help in having a more interesting Q&A if we could read the state of the art of the debate. 5-minutes intervention? Zoe ","comment_id":"21416","post_id":"5891","user_id":"3855","parent_comment_id":"0","creation_date":"Sunday, February 14, 2016 - 12:54","group_id":"5954"}},{"node":{"title":"Certainly!","content":"\n\nThe list of attendees is going to be provisional at best. Your main audience is the OC consortium. Several people from the ER community will also attend. Some will be more on the data geek side, like @MoE; others will be from the medical space (I spoke to a woman called Claire at the LOTE5 ap\u00e9ro). We'll have to improvise. My solution to this is: we announce clearly what the tracks will be, and people who come will be attracted by the tracks.\u00a0\nTo share the data ahead of time is a great idea. I suggest a GitHub repo.\u00a0\nTake care! The dataset has the whole Edgeryders conversation at the time it was generated, so thousands of posts and well over 10,000 comments. But only those of the Spot The Future projects are coded with semantic information! For the rest, you can draw an Edgesense-style social network, but that's about it. Unless you want to try NLP stuff, which I would advise against because it is a totally different methodological path.\u00a0\n\n","comment_id":"21388","post_id":"5870","user_id":"34","parent_comment_id":"21298","creation_date":"Saturday, February 13, 2016 - 12:41","group_id":"5954"}},{"node":{"title":"Certainly!","content":"\n\nThe list of attendees is going to be provisional at best. Your main audience is the OC consortium. Several people from the ER community will also attend. Some will be more on the data geek side, like @MoE; others will be from the medical space (I spoke to a woman called Claire at the LOTE5 ap\u00e9ro). We'll have to improvise. My solution to this is: we announce clearly what the tracks will be, and people who come will be attracted by the tracks.\u00a0\nTo share the data ahead of time is a great idea. I suggest a GitHub repo.\u00a0\nTake care! The dataset has the whole Edgeryders conversation at the time it was generated, so thousands of posts and well over 10,000 comments. But only those of the Spot The Future projects are coded with semantic information! For the rest, you can draw an Edgesense-style social network, but that's about it. Unless you want to try NLP stuff, which I would advise against because it is a totally different methodological path.\u00a0\n\n","comment_id":"21388","post_id":"5870","user_id":"34","parent_comment_id":"21298","creation_date":"Saturday, February 13, 2016 - 12:41","group_id":"5954"}},{"node":{"title":"Certainly!","content":"\n\nThe list of attendees is going to be provisional at best. Your main audience is the OC consortium. Several people from the ER community will also attend. Some will be more on the data geek side, like @MoE; others will be from the medical space (I spoke to a woman called Claire at the LOTE5 ap\u00e9ro). We'll have to improvise. My solution to this is: we announce clearly what the tracks will be, and people who come will be attracted by the tracks.\u00a0\nTo share the data ahead of time is a great idea. I suggest a GitHub repo.\u00a0\nTake care! The dataset has the whole Edgeryders conversation at the time it was generated, so thousands of posts and well over 10,000 comments. But only those of the Spot The Future projects are coded with semantic information! For the rest, you can draw an Edgesense-style social network, but that's about it. Unless you want to try NLP stuff, which I would advise against because it is a totally different methodological path.\u00a0\n\n","comment_id":"21388","post_id":"5870","user_id":"34","parent_comment_id":"21298","creation_date":"Saturday, February 13, 2016 - 12:41","group_id":"5954"}},{"node":{"title":"Certainly!","content":"\n\nThe list of attendees is going to be provisional at best. Your main audience is the OC consortium. Several people from the ER community will also attend. Some will be more on the data geek side, like @MoE; others will be from the medical space (I spoke to a woman called Claire at the LOTE5 ap\u00e9ro). We'll have to improvise. My solution to this is: we announce clearly what the tracks will be, and people who come will be attracted by the tracks.\u00a0\nTo share the data ahead of time is a great idea. I suggest a GitHub repo.\u00a0\nTake care! The dataset has the whole Edgeryders conversation at the time it was generated, so thousands of posts and well over 10,000 comments. But only those of the Spot The Future projects are coded with semantic information! For the rest, you can draw an Edgesense-style social network, but that's about it. Unless you want to try NLP stuff, which I would advise against because it is a totally different methodological path.\u00a0\n\n","comment_id":"21388","post_id":"5870","user_id":"34","parent_comment_id":"21298","creation_date":"Saturday, February 13, 2016 - 12:41","group_id":"5954"}},{"node":{"title":"count me in ","content":"\nsure will be there.\n","comment_id":"21378","post_id":"5870","user_id":"5616","parent_comment_id":"21356","creation_date":"Friday, February 12, 2016 - 20:14","group_id":"5954"}},{"node":{"title":"count me in ","content":"\nsure will be there.\n","comment_id":"21378","post_id":"5870","user_id":"5616","parent_comment_id":"21356","creation_date":"Friday, February 12, 2016 - 20:14","group_id":"5954"}},{"node":{"title":"count me in ","content":"\nsure will be there.\n","comment_id":"21378","post_id":"5870","user_id":"5616","parent_comment_id":"21356","creation_date":"Friday, February 12, 2016 - 20:14","group_id":"5954"}},{"node":{"title":"count me in ","content":"\nsure will be there.\n","comment_id":"21378","post_id":"5870","user_id":"5616","parent_comment_id":"21356","creation_date":"Friday, February 12, 2016 - 20:14","group_id":"5954"}},{"node":{"title":"How about teaming up","content":"\nThanks @Noemi\nHow about teaming up with @Hazem in the morning and then leaving (the most fabulous) MoN4 to join your afternoon session?\n@Hazem, please let me know whether this suits you.\nGuy\n","comment_id":"21356","post_id":"5870","user_id":"6399","parent_comment_id":"21343","creation_date":"Thursday, February 11, 2016 - 17:25","group_id":"5954"}},{"node":{"title":"How about teaming up","content":"\nThanks @Noemi\nHow about teaming up with @Hazem in the morning and then leaving (the most fabulous) MoN4 to join your afternoon session?\n@Hazem, please let me know whether this suits you.\nGuy\n","comment_id":"21356","post_id":"5870","user_id":"6399","parent_comment_id":"21343","creation_date":"Thursday, February 11, 2016 - 17:25","group_id":"5954"}},{"node":{"title":"How about teaming up","content":"\nThanks @Noemi\nHow about teaming up with @Hazem in the morning and then leaving (the most fabulous) MoN4 to join your afternoon session?\n@Hazem, please let me know whether this suits you.\nGuy\n","comment_id":"21356","post_id":"5870","user_id":"6399","parent_comment_id":"21343","creation_date":"Thursday, February 11, 2016 - 17:25","group_id":"5954"}},{"node":{"title":"How about teaming up","content":"\nThanks @Noemi\nHow about teaming up with @Hazem in the morning and then leaving (the most fabulous) MoN4 to join your afternoon session?\n@Hazem, please let me know whether this suits you.\nGuy\n","comment_id":"21356","post_id":"5870","user_id":"6399","parent_comment_id":"21343","creation_date":"Thursday, February 11, 2016 - 17:25","group_id":"5954"}},{"node":{"title":"Mm maybe send out a press release about this?","content":"\nI'm meeting a Brussels based journalist specialising on EU related news. I'll prepare a first draft of a press release ahead of our meeting tomorrow and ask for feedback. Then once it's cool I'll forward it to some Press\/comms people at EC and EU parl. I'd maybe print an A4 and have someone slip it into offices of people working on relevant issues\/questions :))\n","comment_id":"21355","post_id":"5891","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, February 11, 2016 - 16:11","group_id":"5954"}},{"node":{"title":"Mm maybe send out a press release about this?","content":"\nI'm meeting a Brussels based journalist specialising on EU related news. I'll prepare a first draft of a press release ahead of our meeting tomorrow and ask for feedback. Then once it's cool I'll forward it to some Press\/comms people at EC and EU parl. I'd maybe print an A4 and have someone slip it into offices of people working on relevant issues\/questions :))\n","comment_id":"21355","post_id":"5891","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, February 11, 2016 - 16:11","group_id":"5954"}},{"node":{"title":"Mm maybe send out a press release about this?","content":"\nI'm meeting a Brussels based journalist specialising on EU related news. I'll prepare a first draft of a press release ahead of our meeting tomorrow and ask for feedback. Then once it's cool I'll forward it to some Press\/comms people at EC and EU parl. I'd maybe print an A4 and have someone slip it into offices of people working on relevant issues\/questions :))\n","comment_id":"21355","post_id":"5891","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, February 11, 2016 - 16:11","group_id":"5954"}},{"node":{"title":"Here it is ","content":"\n\nThe \"Edit\" tab is above the LOTE5 logo.\u00a0@markomanka\n","comment_id":"21354","post_id":"5891","user_id":"34","parent_comment_id":"21342","creation_date":"Thursday, February 11, 2016 - 15:45","group_id":"5954"}},{"node":{"title":"Here it is ","content":"\n\nThe \"Edit\" tab is above the LOTE5 logo.\u00a0@markomanka\n","comment_id":"21354","post_id":"5891","user_id":"34","parent_comment_id":"21342","creation_date":"Thursday, February 11, 2016 - 15:45","group_id":"5954"}},{"node":{"title":"Here it is ","content":"\n\nThe \"Edit\" tab is above the LOTE5 logo.\u00a0@markomanka\n","comment_id":"21354","post_id":"5891","user_id":"34","parent_comment_id":"21342","creation_date":"Thursday, February 11, 2016 - 15:45","group_id":"5954"}},{"node":{"title":"Flattered but..","content":"\nThanks @melancon. The only issue I see is that I have to moderate the European Capitals panel Saturday starting 2PM.\u00a0\nI would also recommend @Hazem\u00a0for the job, as he is joining us for Lote, has been doing previous work with Edgesense and knows the ER network well enough.\n","comment_id":"21343","post_id":"5870","user_id":"32","parent_comment_id":"21314","creation_date":"Thursday, February 11, 2016 - 13:13","group_id":"5954"}},{"node":{"title":"Flattered but..","content":"\nThanks @melancon. The only issue I see is that I have to moderate the European Capitals panel Saturday starting 2PM.\u00a0\nI would also recommend @Hazem\u00a0for the job, as he is joining us for Lote, has been doing previous work with Edgesense and knows the ER network well enough.\n","comment_id":"21343","post_id":"5870","user_id":"32","parent_comment_id":"21314","creation_date":"Thursday, February 11, 2016 - 13:13","group_id":"5954"}},{"node":{"title":"Flattered but..","content":"\nThanks @melancon. The only issue I see is that I have to moderate the European Capitals panel Saturday starting 2PM.\u00a0\nI would also recommend @Hazem\u00a0for the job, as he is joining us for Lote, has been doing previous work with Edgesense and knows the ER network well enough.\n","comment_id":"21343","post_id":"5870","user_id":"32","parent_comment_id":"21314","creation_date":"Thursday, February 11, 2016 - 13:13","group_id":"5954"}},{"node":{"title":"Flattered but..","content":"\nThanks @melancon. The only issue I see is that I have to moderate the European Capitals panel Saturday starting 2PM.\u00a0\nI would also recommend @Hazem\u00a0for the job, as he is joining us for Lote, has been doing previous work with Edgesense and knows the ER network well enough.\n","comment_id":"21343","post_id":"5870","user_id":"32","parent_comment_id":"21314","creation_date":"Thursday, February 11, 2016 - 13:13","group_id":"5954"}},{"node":{"title":"Deal...","content":"\n...However, I do not find an \"edit\" option for that event description. Maybe @Noemi can help me?\n","comment_id":"21342","post_id":"5891","user_id":"2424","parent_comment_id":"21333","creation_date":"Thursday, February 11, 2016 - 12:58","group_id":"5954"}},{"node":{"title":"Deal...","content":"\n...However, I do not find an \"edit\" option for that event description. Maybe @Noemi can help me?\n","comment_id":"21342","post_id":"5891","user_id":"2424","parent_comment_id":"21333","creation_date":"Thursday, February 11, 2016 - 12:58","group_id":"5954"}},{"node":{"title":"Deal...","content":"\n...However, I do not find an \"edit\" option for that event description. Maybe @Noemi can help me?\n","comment_id":"21342","post_id":"5891","user_id":"2424","parent_comment_id":"21333","creation_date":"Thursday, February 11, 2016 - 12:58","group_id":"5954"}},{"node":{"title":"OK, then it's on","content":"\n@markomanka, final effort:\n\nupdate the description of your even accordingly. Highlight that participants are more than welcome to get involved in the discussion with the panelists.\nadd start\/end date and time\nI will update the program page, confirm with Julia and put you two in touch.\u00a0\n\nDeal?\n","comment_id":"21333","post_id":"5891","user_id":"34","parent_comment_id":"21331","creation_date":"Thursday, February 11, 2016 - 11:41","group_id":"5954"}},{"node":{"title":"OK, then it's on","content":"\n@markomanka, final effort:\n\nupdate the description of your even accordingly. Highlight that participants are more than welcome to get involved in the discussion with the panelists.\nadd start\/end date and time\nI will update the program page, confirm with Julia and put you two in touch.\u00a0\n\nDeal?\n","comment_id":"21333","post_id":"5891","user_id":"34","parent_comment_id":"21331","creation_date":"Thursday, February 11, 2016 - 11:41","group_id":"5954"}},{"node":{"title":"OK, then it's on","content":"\n@markomanka, final effort:\n\nupdate the description of your even accordingly. Highlight that participants are more than welcome to get involved in the discussion with the panelists.\nadd start\/end date and time\nI will update the program page, confirm with Julia and put you two in touch.\u00a0\n\nDeal?\n","comment_id":"21333","post_id":"5891","user_id":"34","parent_comment_id":"21331","creation_date":"Thursday, February 11, 2016 - 11:41","group_id":"5954"}},{"node":{"title":"More than I could have hoped for ^_^","content":"\nSounds terrific to me.\n","comment_id":"21331","post_id":"5891","user_id":"2424","parent_comment_id":"0","creation_date":"Thursday, February 11, 2016 - 11:36","group_id":"5954"}},{"node":{"title":"More than I could have hoped for ^_^","content":"\nSounds terrific to me.\n","comment_id":"21331","post_id":"5891","user_id":"2424","parent_comment_id":"0","creation_date":"Thursday, February 11, 2016 - 11:36","group_id":"5954"}},{"node":{"title":"More than I could have hoped for ^_^","content":"\nSounds terrific to me.\n","comment_id":"21331","post_id":"5891","user_id":"2424","parent_comment_id":"0","creation_date":"Thursday, February 11, 2016 - 11:36","group_id":"5954"}},{"node":{"title":"Coordinator for interpretation challenge","content":"\n@Noemi, I deliberately put you as coordinator for the interpretation -- without asking you first whether you would like to, or even be available! I only did it based on your past experience of previous MoNs. I know you would do a marvelous job.\nGuy\n","comment_id":"21314","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 20:05","group_id":"5954"}},{"node":{"title":"Coordinator for interpretation challenge","content":"\n@Noemi, I deliberately put you as coordinator for the interpretation -- without asking you first whether you would like to, or even be available! I only did it based on your past experience of previous MoNs. I know you would do a marvelous job.\nGuy\n","comment_id":"21314","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 20:05","group_id":"5954"}},{"node":{"title":"Coordinator for interpretation challenge","content":"\n@Noemi, I deliberately put you as coordinator for the interpretation -- without asking you first whether you would like to, or even be available! I only did it based on your past experience of previous MoNs. I know you would do a marvelous job.\nGuy\n","comment_id":"21314","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 20:05","group_id":"5954"}},{"node":{"title":"Coordinator for interpretation challenge","content":"\n@Noemi, I deliberately put you as coordinator for the interpretation -- without asking you first whether you would like to, or even be available! I only did it based on your past experience of previous MoNs. I know you would do a marvelous job.\nGuy\n","comment_id":"21314","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 20:05","group_id":"5954"}},{"node":{"title":"Need a hand","content":"\n@Alberto\nI was about to edit the text of the event, but I thought I should double-check -- I admit I have but no experience in organizing things the way it takes place on edgeryders.eu\n\nI already asked for a list of attendees, thinking I could possibly format the workshop according to the audience.\n\n I could probably refine the different challenges accordingly.\n\n\nI thought I should share the data ahead of time for those who wish to have alook at the material we'll be using. I have a set of JSONs, and I also uploaded everything into a Neo4j database. Neo4j is nice because it allows to readily visualize the data without really doing anything special (but install neo4j).\n\n Note: the JSONs I have include much more content than what you describe. I guess the few hundreds users and comments you mention were obtained by discarding but items of interest (I see this as being part of the process).\n\n\n\n","comment_id":"21298","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 13:29","group_id":"5954"}},{"node":{"title":"Need a hand","content":"\n@Alberto\nI was about to edit the text of the event, but I thought I should double-check -- I admit I have but no experience in organizing things the way it takes place on edgeryders.eu\n\nI already asked for a list of attendees, thinking I could possibly format the workshop according to the audience.\n\n I could probably refine the different challenges accordingly.\n\n\nI thought I should share the data ahead of time for those who wish to have alook at the material we'll be using. I have a set of JSONs, and I also uploaded everything into a Neo4j database. Neo4j is nice because it allows to readily visualize the data without really doing anything special (but install neo4j).\n\n Note: the JSONs I have include much more content than what you describe. I guess the few hundreds users and comments you mention were obtained by discarding but items of interest (I see this as being part of the process).\n\n\n\n","comment_id":"21298","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 13:29","group_id":"5954"}},{"node":{"title":"Need a hand","content":"\n@Alberto\nI was about to edit the text of the event, but I thought I should double-check -- I admit I have but no experience in organizing things the way it takes place on edgeryders.eu\n\nI already asked for a list of attendees, thinking I could possibly format the workshop according to the audience.\n\n I could probably refine the different challenges accordingly.\n\n\nI thought I should share the data ahead of time for those who wish to have alook at the material we'll be using. I have a set of JSONs, and I also uploaded everything into a Neo4j database. Neo4j is nice because it allows to readily visualize the data without really doing anything special (but install neo4j).\n\n Note: the JSONs I have include much more content than what you describe. I guess the few hundreds users and comments you mention were obtained by discarding but items of interest (I see this as being part of the process).\n\n\n\n","comment_id":"21298","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 13:29","group_id":"5954"}},{"node":{"title":"Need a hand","content":"\n@Alberto\nI was about to edit the text of the event, but I thought I should double-check -- I admit I have but no experience in organizing things the way it takes place on edgeryders.eu\n\nI already asked for a list of attendees, thinking I could possibly format the workshop according to the audience.\n\n I could probably refine the different challenges accordingly.\n\n\nI thought I should share the data ahead of time for those who wish to have alook at the material we'll be using. I have a set of JSONs, and I also uploaded everything into a Neo4j database. Neo4j is nice because it allows to readily visualize the data without really doing anything special (but install neo4j).\n\n Note: the JSONs I have include much more content than what you describe. I guess the few hundreds users and comments you mention were obtained by discarding but items of interest (I see this as being part of the process).\n\n\n\n","comment_id":"21298","post_id":"5870","user_id":"6399","parent_comment_id":"0","creation_date":"Wednesday, February 10, 2016 - 13:29","group_id":"5954"}},{"node":{"title":"\"Yes, but what will we DO?\"","content":"\n@melancon, my friend: our text is clear and nicely written, but it is not a work program. I added a tentative agenda section. Please look it up and see if you think it makes sense. If it does, assign yourself as the coordinator of a challenge... or maybe let's decide to do only one challenge, so we can hack together!\nI kind of like the idea of the quality challenge.\u00a0\nInput from all participants welcome! @MoE\u00a0@dora\u00a0@Betty Gorf\u00a0@jimmytidey\u00a0(Jimmy, are you coming?)\n","comment_id":"21225","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Friday, February 5, 2016 - 18:18","group_id":"5954"}},{"node":{"title":"\"Yes, but what will we DO?\"","content":"\n@melancon, my friend: our text is clear and nicely written, but it is not a work program. I added a tentative agenda section. Please look it up and see if you think it makes sense. If it does, assign yourself as the coordinator of a challenge... or maybe let's decide to do only one challenge, so we can hack together!\nI kind of like the idea of the quality challenge.\u00a0\nInput from all participants welcome! @MoE\u00a0@dora\u00a0@Betty Gorf\u00a0@jimmytidey\u00a0(Jimmy, are you coming?)\n","comment_id":"21225","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Friday, February 5, 2016 - 18:18","group_id":"5954"}},{"node":{"title":"\"Yes, but what will we DO?\"","content":"\n@melancon, my friend: our text is clear and nicely written, but it is not a work program. I added a tentative agenda section. Please look it up and see if you think it makes sense. If it does, assign yourself as the coordinator of a challenge... or maybe let's decide to do only one challenge, so we can hack together!\nI kind of like the idea of the quality challenge.\u00a0\nInput from all participants welcome! @MoE\u00a0@dora\u00a0@Betty Gorf\u00a0@jimmytidey\u00a0(Jimmy, are you coming?)\n","comment_id":"21225","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Friday, February 5, 2016 - 18:18","group_id":"5954"}},{"node":{"title":"\"Yes, but what will we DO?\"","content":"\n@melancon, my friend: our text is clear and nicely written, but it is not a work program. I added a tentative agenda section. Please look it up and see if you think it makes sense. If it does, assign yourself as the coordinator of a challenge... or maybe let's decide to do only one challenge, so we can hack together!\nI kind of like the idea of the quality challenge.\u00a0\nInput from all participants welcome! @MoE\u00a0@dora\u00a0@Betty Gorf\u00a0@jimmytidey\u00a0(Jimmy, are you coming?)\n","comment_id":"21225","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Friday, February 5, 2016 - 18:18","group_id":"5954"}},{"node":{"title":"So...","content":"\n... please click on the \"Attend\" button. While you are at it, please do the same on the LOTE5 event here. @Rossana Torri, can you do it too please? I will explain better the rationale for this when we meet in Brussels.\u00a0\n","comment_id":"21198","post_id":"5870","user_id":"34","parent_comment_id":"21196","creation_date":"Thursday, February 4, 2016 - 15:54","group_id":"5954"}},{"node":{"title":"So...","content":"\n... please click on the \"Attend\" button. While you are at it, please do the same on the LOTE5 event here. @Rossana Torri, can you do it too please? I will explain better the rationale for this when we meet in Brussels.\u00a0\n","comment_id":"21198","post_id":"5870","user_id":"34","parent_comment_id":"21196","creation_date":"Thursday, February 4, 2016 - 15:54","group_id":"5954"}},{"node":{"title":"So...","content":"\n... please click on the \"Attend\" button. While you are at it, please do the same on the LOTE5 event here. @Rossana Torri, can you do it too please? I will explain better the rationale for this when we meet in Brussels.\u00a0\n","comment_id":"21198","post_id":"5870","user_id":"34","parent_comment_id":"21196","creation_date":"Thursday, February 4, 2016 - 15:54","group_id":"5954"}},{"node":{"title":"So...","content":"\n... please click on the \"Attend\" button. While you are at it, please do the same on the LOTE5 event here. @Rossana Torri, can you do it too please? I will explain better the rationale for this when we meet in Brussels.\u00a0\n","comment_id":"21198","post_id":"5870","user_id":"34","parent_comment_id":"21196","creation_date":"Thursday, February 4, 2016 - 15:54","group_id":"5954"}},{"node":{"title":"all right","content":"\nI'm in\n","comment_id":"21196","post_id":"5870","user_id":"6487","parent_comment_id":"0","creation_date":"Thursday, February 4, 2016 - 14:43","group_id":"5954"}},{"node":{"title":"all right","content":"\nI'm in\n","comment_id":"21196","post_id":"5870","user_id":"6487","parent_comment_id":"0","creation_date":"Thursday, February 4, 2016 - 14:43","group_id":"5954"}},{"node":{"title":"all right","content":"\nI'm in\n","comment_id":"21196","post_id":"5870","user_id":"6487","parent_comment_id":"0","creation_date":"Thursday, February 4, 2016 - 14:43","group_id":"5954"}},{"node":{"title":"all right","content":"\nI'm in\n","comment_id":"21196","post_id":"5870","user_id":"6487","parent_comment_id":"0","creation_date":"Thursday, February 4, 2016 - 14:43","group_id":"5954"}},{"node":{"title":"Yes","content":"\nI see your role as helping to shape questions, i.e. map the methodology we'll be working with onto care in general and OpenCare in particular.\u00a0\n","comment_id":"21194","post_id":"5870","user_id":"34","parent_comment_id":"21193","creation_date":"Thursday, February 4, 2016 - 13:18","group_id":"5954"}},{"node":{"title":"Yes","content":"\nI see your role as helping to shape questions, i.e. map the methodology we'll be working with onto care in general and OpenCare in particular.\u00a0\n","comment_id":"21194","post_id":"5870","user_id":"34","parent_comment_id":"21193","creation_date":"Thursday, February 4, 2016 - 13:18","group_id":"5954"}},{"node":{"title":"Yes","content":"\nI see your role as helping to shape questions, i.e. map the methodology we'll be working with onto care in general and OpenCare in particular.\u00a0\n","comment_id":"21194","post_id":"5870","user_id":"34","parent_comment_id":"21193","creation_date":"Thursday, February 4, 2016 - 13:18","group_id":"5954"}},{"node":{"title":"Yes","content":"\nI see your role as helping to shape questions, i.e. map the methodology we'll be working with onto care in general and OpenCare in particular.\u00a0\n","comment_id":"21194","post_id":"5870","user_id":"34","parent_comment_id":"21193","creation_date":"Thursday, February 4, 2016 - 13:18","group_id":"5954"}},{"node":{"title":"enrolling","content":"\nhi alberto!\nCan I facilitate even if I must leave at 1 pm?\n","comment_id":"21193","post_id":"5870","user_id":"6487","parent_comment_id":"21183","creation_date":"Thursday, February 4, 2016 - 13:04","group_id":"5954"}},{"node":{"title":"enrolling","content":"\nhi alberto!\nCan I facilitate even if I must leave at 1 pm?\n","comment_id":"21193","post_id":"5870","user_id":"6487","parent_comment_id":"21183","creation_date":"Thursday, February 4, 2016 - 13:04","group_id":"5954"}},{"node":{"title":"enrolling","content":"\nhi alberto!\nCan I facilitate even if I must leave at 1 pm?\n","comment_id":"21193","post_id":"5870","user_id":"6487","parent_comment_id":"21183","creation_date":"Thursday, February 4, 2016 - 13:04","group_id":"5954"}},{"node":{"title":"enrolling","content":"\nhi alberto!\nCan I facilitate even if I must leave at 1 pm?\n","comment_id":"21193","post_id":"5870","user_id":"6487","parent_comment_id":"21183","creation_date":"Thursday, February 4, 2016 - 13:04","group_id":"5954"}},{"node":{"title":"Hey :-)","content":"\nFunny, I always say the same of you.\u00a0\n","comment_id":"21185","post_id":"5870","user_id":"34","parent_comment_id":"21184","creation_date":"Wednesday, February 3, 2016 - 19:53","group_id":"5954"}},{"node":{"title":"Hey :-)","content":"\nFunny, I always say the same of you.\u00a0\n","comment_id":"21185","post_id":"5870","user_id":"34","parent_comment_id":"21184","creation_date":"Wednesday, February 3, 2016 - 19:53","group_id":"5954"}},{"node":{"title":"Hey :-)","content":"\nFunny, I always say the same of you.\u00a0\n","comment_id":"21185","post_id":"5870","user_id":"34","parent_comment_id":"21184","creation_date":"Wednesday, February 3, 2016 - 19:53","group_id":"5954"}},{"node":{"title":"Hey :-)","content":"\nFunny, I always say the same of you.\u00a0\n","comment_id":"21185","post_id":"5870","user_id":"34","parent_comment_id":"21184","creation_date":"Wednesday, February 3, 2016 - 19:53","group_id":"5954"}},{"node":{"title":"Thanks","content":"\nGood. Thanks for helping. You have a talent it would take me yet another life to learn :-)\n","comment_id":"21184","post_id":"5870","user_id":"6399","parent_comment_id":"21183","creation_date":"Wednesday, February 3, 2016 - 19:49","group_id":"5954"}},{"node":{"title":"Thanks","content":"\nGood. Thanks for helping. You have a talent it would take me yet another life to learn :-)\n","comment_id":"21184","post_id":"5870","user_id":"6399","parent_comment_id":"21183","creation_date":"Wednesday, February 3, 2016 - 19:49","group_id":"5954"}},{"node":{"title":"Thanks","content":"\nGood. Thanks for helping. You have a talent it would take me yet another life to learn :-)\n","comment_id":"21184","post_id":"5870","user_id":"6399","parent_comment_id":"21183","creation_date":"Wednesday, February 3, 2016 - 19:49","group_id":"5954"}},{"node":{"title":"Thanks","content":"\nGood. Thanks for helping. You have a talent it would take me yet another life to learn :-)\n","comment_id":"21184","post_id":"5870","user_id":"6399","parent_comment_id":"21183","creation_date":"Wednesday, February 3, 2016 - 19:49","group_id":"5954"}},{"node":{"title":"Moved everything here","content":"\n@melancon, I rewrote your text for outreach purposes. Do change what you don't like. I also had to move the content to a newly created event for technical reasons.\u00a0\n@markomanka\u00a0and @Luciascopelliti, please note that I have enrolled you.\u00a0\u00a0It will be fun! Please click on the \"attend\" button. Same goes for @MoE\u00a0and @dora\u00a0and whoever is interested. @mstn? @maxlath? @danohu?\u00a0\n","comment_id":"21183","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 3, 2016 - 19:34","group_id":"5954"}},{"node":{"title":"Moved everything here","content":"\n@melancon, I rewrote your text for outreach purposes. Do change what you don't like. I also had to move the content to a newly created event for technical reasons.\u00a0\n@markomanka\u00a0and @Luciascopelliti, please note that I have enrolled you.\u00a0\u00a0It will be fun! Please click on the \"attend\" button. Same goes for @MoE\u00a0and @dora\u00a0and whoever is interested. @mstn? @maxlath? @danohu?\u00a0\n","comment_id":"21183","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 3, 2016 - 19:34","group_id":"5954"}},{"node":{"title":"Moved everything here","content":"\n@melancon, I rewrote your text for outreach purposes. Do change what you don't like. I also had to move the content to a newly created event for technical reasons.\u00a0\n@markomanka\u00a0and @Luciascopelliti, please note that I have enrolled you.\u00a0\u00a0It will be fun! Please click on the \"attend\" button. Same goes for @MoE\u00a0and @dora\u00a0and whoever is interested. @mstn? @maxlath? @danohu?\u00a0\n","comment_id":"21183","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 3, 2016 - 19:34","group_id":"5954"}},{"node":{"title":"Moved everything here","content":"\n@melancon, I rewrote your text for outreach purposes. Do change what you don't like. I also had to move the content to a newly created event for technical reasons.\u00a0\n@markomanka\u00a0and @Luciascopelliti, please note that I have enrolled you.\u00a0\u00a0It will be fun! Please click on the \"attend\" button. Same goes for @MoE\u00a0and @dora\u00a0and whoever is interested. @mstn? @maxlath? @danohu?\u00a0\n","comment_id":"21183","post_id":"5870","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, February 3, 2016 - 19:34","group_id":"5954"}},{"node":{"title":"Waiting == bad","content":"\nNo, @Nadia, I'd say no point in waiting. The text is final, except for very minor details. Let's get it out there, reach sold out, then get\u00a0that\u00a0news out again: it will energise the speakers, the community, the people interested in the refugees issue, etc.\u00a0\n","comment_id":"21041","post_id":"5840","user_id":"34","parent_comment_id":"21036","creation_date":"Wednesday, January 27, 2016 - 17:49","group_id":"5954"}},{"node":{"title":"Waiting == bad","content":"\nNo, @Nadia, I'd say no point in waiting. The text is final, except for very minor details. Let's get it out there, reach sold out, then get\u00a0that\u00a0news out again: it will energise the speakers, the community, the people interested in the refugees issue, etc.\u00a0\n","comment_id":"21041","post_id":"5840","user_id":"34","parent_comment_id":"21036","creation_date":"Wednesday, January 27, 2016 - 17:49","group_id":"5954"}},{"node":{"title":"Waiting == bad","content":"\nNo, @Nadia, I'd say no point in waiting. The text is final, except for very minor details. Let's get it out there, reach sold out, then get\u00a0that\u00a0news out again: it will energise the speakers, the community, the people interested in the refugees issue, etc.\u00a0\n","comment_id":"21041","post_id":"5840","user_id":"34","parent_comment_id":"21036","creation_date":"Wednesday, January 27, 2016 - 17:49","group_id":"5954"}},{"node":{"title":"Beautiful.","content":"\nThanks for adding the changes straight into the program, makes our lives easier.\n","comment_id":"21040","post_id":"5840","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 17:47","group_id":"5954"}},{"node":{"title":"Beautiful.","content":"\nThanks for adding the changes straight into the program, makes our lives easier.\n","comment_id":"21040","post_id":"5840","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 17:47","group_id":"5954"}},{"node":{"title":"Beautiful.","content":"\nThanks for adding the changes straight into the program, makes our lives easier.\n","comment_id":"21040","post_id":"5840","user_id":"32","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 17:47","group_id":"5954"}},{"node":{"title":"I'll set up a separate FB event page for it","content":"\nonce you share the final text?\n","comment_id":"21036","post_id":"5840","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 16:24","group_id":"5954"}},{"node":{"title":"I'll set up a separate FB event page for it","content":"\nonce you share the final text?\n","comment_id":"21036","post_id":"5840","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 16:24","group_id":"5954"}},{"node":{"title":"I'll set up a separate FB event page for it","content":"\nonce you share the final text?\n","comment_id":"21036","post_id":"5840","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 16:24","group_id":"5954"}},{"node":{"title":"Ping","content":"\n@markomanka\u00a0is this you?\u00a0\n","comment_id":"21013","post_id":"5835","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 11:21","group_id":"5954"}},{"node":{"title":"Ping","content":"\n@markomanka\u00a0is this you?\u00a0\n","comment_id":"21013","post_id":"5835","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, January 27, 2016 - 11:21","group_id":"5954"}},{"node":{"title":"swamped but still on it...","content":"\nI'm a bit swamped now, as I have a delivery tomorrow, but will catch up this weekend.\nI kept working a bit on our stuff with @dora, though, we now can get the different languages for each page too (not sure it is the same solution which @maxlath mentioned; we used the langlinks argument from MediaWiki's API).\nAlso, we started implementing a MongoDB client, to try use solutions compatible with what was used already and to figure out what is the best way to store the mined data, according to how we'll use it at MoN.\nIn the repo I linked above, I pushed a few more scripts and the first attempt to re-organize the code in the form of a tool to ease the data collection step. There's still stuff to do, and much of the code is not polished, but better than nothing :)\n","comment_id":"20941","post_id":"5744","user_id":"4846","parent_comment_id":"0","creation_date":"Thursday, January 21, 2016 - 21:54","group_id":"5954"}},{"node":{"title":"swamped but still on it...","content":"\nI'm a bit swamped now, as I have a delivery tomorrow, but will catch up this weekend.\nI kept working a bit on our stuff with @dora, though, we now can get the different languages for each page too (not sure it is the same solution which @maxlath mentioned; we used the langlinks argument from MediaWiki's API).\nAlso, we started implementing a MongoDB client, to try use solutions compatible with what was used already and to figure out what is the best way to store the mined data, according to how we'll use it at MoN.\nIn the repo I linked above, I pushed a few more scripts and the first attempt to re-organize the code in the form of a tool to ease the data collection step. There's still stuff to do, and much of the code is not polished, but better than nothing :)\n","comment_id":"20941","post_id":"5744","user_id":"4846","parent_comment_id":"0","creation_date":"Thursday, January 21, 2016 - 21:54","group_id":"5954"}},{"node":{"title":"swamped but still on it...","content":"\nI'm a bit swamped now, as I have a delivery tomorrow, but will catch up this weekend.\nI kept working a bit on our stuff with @dora, though, we now can get the different languages for each page too (not sure it is the same solution which @maxlath mentioned; we used the langlinks argument from MediaWiki's API).\nAlso, we started implementing a MongoDB client, to try use solutions compatible with what was used already and to figure out what is the best way to store the mined data, according to how we'll use it at MoN.\nIn the repo I linked above, I pushed a few more scripts and the first attempt to re-organize the code in the form of a tool to ease the data collection step. There's still stuff to do, and much of the code is not polished, but better than nothing :)\n","comment_id":"20941","post_id":"5744","user_id":"4846","parent_comment_id":"0","creation_date":"Thursday, January 21, 2016 - 21:54","group_id":"5954"}},{"node":{"title":"Would have to be v. late or v. early","content":"\nAm at an event in Vienna. Email?\n","comment_id":"20907","post_id":"5787","user_id":"45","parent_comment_id":"20905","creation_date":"Wednesday, January 20, 2016 - 13:15","group_id":"5954"}},{"node":{"title":"Would have to be v. late or v. early","content":"\nAm at an event in Vienna. Email?\n","comment_id":"20907","post_id":"5787","user_id":"45","parent_comment_id":"20905","creation_date":"Wednesday, January 20, 2016 - 13:15","group_id":"5954"}},{"node":{"title":"Would have to be v. late or v. early","content":"\nAm at an event in Vienna. Email?\n","comment_id":"20907","post_id":"5787","user_id":"45","parent_comment_id":"20905","creation_date":"Wednesday, January 20, 2016 - 13:15","group_id":"5954"}},{"node":{"title":"how about tomorrow morning","content":"\nhow about tomorrow morning\/noon?\n","comment_id":"20905","post_id":"5787","user_id":"678","parent_comment_id":"0","creation_date":"Wednesday, January 20, 2016 - 12:53","group_id":"5954"}},{"node":{"title":"how about tomorrow morning","content":"\nhow about tomorrow morning\/noon?\n","comment_id":"20905","post_id":"5787","user_id":"678","parent_comment_id":"0","creation_date":"Wednesday, January 20, 2016 - 12:53","group_id":"5954"}},{"node":{"title":"how about tomorrow morning","content":"\nhow about tomorrow morning\/noon?\n","comment_id":"20905","post_id":"5787","user_id":"678","parent_comment_id":"0","creation_date":"Wednesday, January 20, 2016 - 12:53","group_id":"5954"}},{"node":{"title":"Google Scholar ","content":"\nHey @Nadia\nYou can usually reach us egg-heads easily through email if they are \"corresponding author\" for a publication they made (e.g. address for correspondence : David J. Spiegelhalter, Medical Research Council Biostatistics Unit, Institute of Public Health, Robinson Way, Cambridge, CB2 2SR, UK. E-mail: david.spiegelhalter at mrc-bsu.cam.ac.uk), he is also on Research Gate. Citations oof https:\/\/www.researchgate.net\/publication\/221995760_Probabilistic_Networks_and_Expert_Systems would perhaps be worth a look for @Alberto\nMarc seems to be not quite eggish enough, but http:\/\/harleystreetchildrenshospital.com\/consultants\/professor-marc-de-leval\/ can hopefully relay the message (he is 74 so I don't think he'll be there every day).\nIf any of them agree to come I would love to hear if they have anything to say about the triangle of open care, the performance, and their respective research\/experience, perhaps someone also has specific questions for them? @markomanka\n(Semi)-retired professionals are very often a great enrichment to a discussion...\n\u00a0\n","comment_id":"20903","post_id":"5766","user_id":"6534","parent_comment_id":"20849","creation_date":"Wednesday, January 20, 2016 - 12:26","group_id":"5954"}},{"node":{"title":"Google Scholar ","content":"\nHey @Nadia\nYou can usually reach us egg-heads easily through email if they are \"corresponding author\" for a publication they made (e.g. address for correspondence : David J. Spiegelhalter, Medical Research Council Biostatistics Unit, Institute of Public Health, Robinson Way, Cambridge, CB2 2SR, UK. E-mail: david.spiegelhalter at mrc-bsu.cam.ac.uk), he is also on Research Gate. Citations oof https:\/\/www.researchgate.net\/publication\/221995760_Probabilistic_Networks_and_Expert_Systems would perhaps be worth a look for @Alberto\nMarc seems to be not quite eggish enough, but http:\/\/harleystreetchildrenshospital.com\/consultants\/professor-marc-de-leval\/ can hopefully relay the message (he is 74 so I don't think he'll be there every day).\nIf any of them agree to come I would love to hear if they have anything to say about the triangle of open care, the performance, and their respective research\/experience, perhaps someone also has specific questions for them? @markomanka\n(Semi)-retired professionals are very often a great enrichment to a discussion...\n\u00a0\n","comment_id":"20903","post_id":"5766","user_id":"6534","parent_comment_id":"20849","creation_date":"Wednesday, January 20, 2016 - 12:26","group_id":"5954"}},{"node":{"title":"Python is good! (and you need to register)","content":"\n@MoE\u00a0and @dora, Python is good because @melancon\u00a0likes to use Tulip for network analysis, and Tulip is Python.\u00a0\nContributing coding skills to MoN5 earns you two LOTE5 tickets. Please register here.\u00a0\n","comment_id":"20866","post_id":"5744","user_id":"34","parent_comment_id":"20853","creation_date":"Monday, January 18, 2016 - 11:33","group_id":"5954"}},{"node":{"title":"Python is good! (and you need to register)","content":"\n@MoE\u00a0and @dora, Python is good because @melancon\u00a0likes to use Tulip for network analysis, and Tulip is Python.\u00a0\nContributing coding skills to MoN5 earns you two LOTE5 tickets. Please register here.\u00a0\n","comment_id":"20866","post_id":"5744","user_id":"34","parent_comment_id":"20853","creation_date":"Monday, January 18, 2016 - 11:33","group_id":"5954"}},{"node":{"title":"Python is good! (and you need to register)","content":"\n@MoE\u00a0and @dora, Python is good because @melancon\u00a0likes to use Tulip for network analysis, and Tulip is Python.\u00a0\nContributing coding skills to MoN5 earns you two LOTE5 tickets. Please register here.\u00a0\n","comment_id":"20866","post_id":"5744","user_id":"34","parent_comment_id":"20853","creation_date":"Monday, January 18, 2016 - 11:33","group_id":"5954"}},{"node":{"title":"Hangout?","content":"\nLet me know what time works for you?\n","comment_id":"20862","post_id":"5787","user_id":"45","parent_comment_id":"20861","creation_date":"Monday, January 18, 2016 - 10:26","group_id":"5954"}},{"node":{"title":"Hangout?","content":"\nLet me know what time works for you?\n","comment_id":"20862","post_id":"5787","user_id":"45","parent_comment_id":"20861","creation_date":"Monday, January 18, 2016 - 10:26","group_id":"5954"}},{"node":{"title":"Hangout?","content":"\nLet me know what time works for you?\n","comment_id":"20862","post_id":"5787","user_id":"45","parent_comment_id":"20861","creation_date":"Monday, January 18, 2016 - 10:26","group_id":"5954"}},{"node":{"title":"@Nadia, let's discuss it - we","content":"\n@Nadia, let's discuss it - we can do it together\n","comment_id":"20861","post_id":"5787","user_id":"678","parent_comment_id":"0","creation_date":"Monday, January 18, 2016 - 10:11","group_id":"5954"}},{"node":{"title":"@Nadia, let's discuss it - we","content":"\n@Nadia, let's discuss it - we can do it together\n","comment_id":"20861","post_id":"5787","user_id":"678","parent_comment_id":"0","creation_date":"Monday, January 18, 2016 - 10:11","group_id":"5954"}},{"node":{"title":"@Nadia, let's discuss it - we","content":"\n@Nadia, let's discuss it - we can do it together\n","comment_id":"20861","post_id":"5787","user_id":"678","parent_comment_id":"0","creation_date":"Monday, January 18, 2016 - 10:11","group_id":"5954"}},{"node":{"title":"finally catching up","content":"\nHi everybody,\n\u00a0 I finally took some time to start looking at wikipedia datamining, statviews, etc.\nI'm still far from doing anything fancy, but at least I'm getting an idea of what can be done easily, and how to use the info collected.\nI'm focusing on python only, for now, because I'm more familiar with it (@dora too), and because it could be an easy win, in case the data collected is to be managed via networkx and\/or passed to EdgeSense.\n@Alberto, @melancon, @mstn, @maxlath, @danohu, thank you all for the hints you shared. They all made my job easier.\nso far I managed to fetch pages for a certain project (ie. Wikipedia:WikiProject Medicine), gather general info about the page, tell whether links to other pages point to the same project or not, get pageviews.\nThough, I didn't managed to map english pages to the relative translation in other\u00a0 languages (is wikidata a better interface for this?).\nI'm also struggling to find an encoding\/decoding logic for pagename strings, which is generalized enough to deal correctly with all the special characters (I'm still figuring out whether I can rely on pageid only).\nI pushed some code here:\nhttps:\/\/github.com\/FuturoAnteriore\/visualizing-self-diagnosis\/tree\/dev-moe\/src\/python\nit's just a bunch of sketches, but if you think they might be handy I can send a pull request.\nWill keep you posted on any progress...\n","comment_id":"20853","post_id":"5744","user_id":"4846","parent_comment_id":"0","creation_date":"Sunday, January 17, 2016 - 20:33","group_id":"5954"}},{"node":{"title":"finally catching up","content":"\nHi everybody,\n\u00a0 I finally took some time to start looking at wikipedia datamining, statviews, etc.\nI'm still far from doing anything fancy, but at least I'm getting an idea of what can be done easily, and how to use the info collected.\nI'm focusing on python only, for now, because I'm more familiar with it (@dora too), and because it could be an easy win, in case the data collected is to be managed via networkx and\/or passed to EdgeSense.\n@Alberto, @melancon, @mstn, @maxlath, @danohu, thank you all for the hints you shared. They all made my job easier.\nso far I managed to fetch pages for a certain project (ie. Wikipedia:WikiProject Medicine), gather general info about the page, tell whether links to other pages point to the same project or not, get pageviews.\nThough, I didn't managed to map english pages to the relative translation in other\u00a0 languages (is wikidata a better interface for this?).\nI'm also struggling to find an encoding\/decoding logic for pagename strings, which is generalized enough to deal correctly with all the special characters (I'm still figuring out whether I can rely on pageid only).\nI pushed some code here:\nhttps:\/\/github.com\/FuturoAnteriore\/visualizing-self-diagnosis\/tree\/dev-moe\/src\/python\nit's just a bunch of sketches, but if you think they might be handy I can send a pull request.\nWill keep you posted on any progress...\n","comment_id":"20853","post_id":"5744","user_id":"4846","parent_comment_id":"0","creation_date":"Sunday, January 17, 2016 - 20:33","group_id":"5954"}},{"node":{"title":"finally catching up","content":"\nHi everybody,\n\u00a0 I finally took some time to start looking at wikipedia datamining, statviews, etc.\nI'm still far from doing anything fancy, but at least I'm getting an idea of what can be done easily, and how to use the info collected.\nI'm focusing on python only, for now, because I'm more familiar with it (@dora too), and because it could be an easy win, in case the data collected is to be managed via networkx and\/or passed to EdgeSense.\n@Alberto, @melancon, @mstn, @maxlath, @danohu, thank you all for the hints you shared. They all made my job easier.\nso far I managed to fetch pages for a certain project (ie. Wikipedia:WikiProject Medicine), gather general info about the page, tell whether links to other pages point to the same project or not, get pageviews.\nThough, I didn't managed to map english pages to the relative translation in other\u00a0 languages (is wikidata a better interface for this?).\nI'm also struggling to find an encoding\/decoding logic for pagename strings, which is generalized enough to deal correctly with all the special characters (I'm still figuring out whether I can rely on pageid only).\nI pushed some code here:\nhttps:\/\/github.com\/FuturoAnteriore\/visualizing-self-diagnosis\/tree\/dev-moe\/src\/python\nit's just a bunch of sketches, but if you think they might be handy I can send a pull request.\nWill keep you posted on any progress...\n","comment_id":"20853","post_id":"5744","user_id":"4846","parent_comment_id":"0","creation_date":"Sunday, January 17, 2016 - 20:33","group_id":"5954"}},{"node":{"title":"Hallo","content":"\nHow's trix?\nThanks for the heads up, not sure how I would reach them though?\n","comment_id":"20849","post_id":"5766","user_id":"45","parent_comment_id":"20836","creation_date":"Sunday, January 17, 2016 - 15:56","group_id":"5954"}},{"node":{"title":"Hallo","content":"\nHow's trix?\nThanks for the heads up, not sure how I would reach them though?\n","comment_id":"20849","post_id":"5766","user_id":"45","parent_comment_id":"20836","creation_date":"Sunday, January 17, 2016 - 15:56","group_id":"5954"}},{"node":{"title":"I can't say for sure, but...","content":"\nPerhaps there are two people interested in here:\nhttps:\/\/youtu.be\/F59Mog7K7GI?t=1468\n \n\n\n\n\nMr. Spiegelhalter and Mr. Leval perhaps? If you'd like it can nudge the info on towards them. Mr. Leval is Belgian so perhaps I could also mention LOTE or some other opportunity for you to meet. His academic publications seem to have wound down so there is hope he has some time...\n","comment_id":"20836","post_id":"5766","user_id":"6534","parent_comment_id":"0","creation_date":"Friday, January 15, 2016 - 17:26","group_id":"5954"}},{"node":{"title":"I can't say for sure, but...","content":"\nPerhaps there are two people interested in here:\nhttps:\/\/youtu.be\/F59Mog7K7GI?t=1468\n \n\n\n\n\nMr. Spiegelhalter and Mr. Leval perhaps? If you'd like it can nudge the info on towards them. Mr. Leval is Belgian so perhaps I could also mention LOTE or some other opportunity for you to meet. His academic publications seem to have wound down so there is hope he has some time...\n","comment_id":"20836","post_id":"5766","user_id":"6534","parent_comment_id":"0","creation_date":"Friday, January 15, 2016 - 17:26","group_id":"5954"}},{"node":{"title":"You rock!","content":"\nWell done @melancon!\u00a0\nLet's all make sure the code and docs get pushed to GitHub. No urgency, obviously.\n","comment_id":"20830","post_id":"5744","user_id":"34","parent_comment_id":"20826","creation_date":"Friday, January 15, 2016 - 11:15","group_id":"5954"}},{"node":{"title":"You rock!","content":"\nWell done @melancon!\u00a0\nLet's all make sure the code and docs get pushed to GitHub. No urgency, obviously.\n","comment_id":"20830","post_id":"5744","user_id":"34","parent_comment_id":"20826","creation_date":"Friday, January 15, 2016 - 11:15","group_id":"5954"}},{"node":{"title":"You rock!","content":"\nWell done @melancon!\u00a0\nLet's all make sure the code and docs get pushed to GitHub. No urgency, obviously.\n","comment_id":"20830","post_id":"5744","user_id":"34","parent_comment_id":"20826","creation_date":"Friday, January 15, 2016 - 11:15","group_id":"5954"}},{"node":{"title":"So far so good with the wikipedia pageviews","content":"\nOk, just to report on what I have been able to assemble this week. Thanks to all, @Alberto, @maxlath, @mstn, @MoE, @dora for helping.\nI am now able to process a query about, let's say some keywords, find related wikidata entities (using maxlath's package), then grab relavant pages in any given (or all) languages,\nand then obtain pageview counts using tomayac's package (aka Thomas Steiner). Thomas' package however only offers daily counts -- simply because wikipedia does not offer more through their API for the moment. So, as @mstn suggests, we may use a DB that would store these counts (and I understand there is one).\nI plan to use the daily counts and the code chain so a user could query the counts concerning some disease, for instance. I could then use the count data and feed it back to the user through a d3 visualization.\nI will certainly have time to wrap this up in the coming days (although I have other code to pamper with a deadline for next Wed, so it may only be ready by the end of Jan).\nThere are tons of other things we could do. It all depends on the task we are supporting. Building wikidata entities into a graph could be useful to guide user towards topics to its initial query, for instance. I'm sure this will be a subject of discussion at MoN4\/LOTE5.\nBest\n","comment_id":"20826","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, January 15, 2016 - 10:09","group_id":"5954"}},{"node":{"title":"So far so good with the wikipedia pageviews","content":"\nOk, just to report on what I have been able to assemble this week. Thanks to all, @Alberto, @maxlath, @mstn, @MoE, @dora for helping.\nI am now able to process a query about, let's say some keywords, find related wikidata entities (using maxlath's package), then grab relavant pages in any given (or all) languages,\nand then obtain pageview counts using tomayac's package (aka Thomas Steiner). Thomas' package however only offers daily counts -- simply because wikipedia does not offer more through their API for the moment. So, as @mstn suggests, we may use a DB that would store these counts (and I understand there is one).\nI plan to use the daily counts and the code chain so a user could query the counts concerning some disease, for instance. I could then use the count data and feed it back to the user through a d3 visualization.\nI will certainly have time to wrap this up in the coming days (although I have other code to pamper with a deadline for next Wed, so it may only be ready by the end of Jan).\nThere are tons of other things we could do. It all depends on the task we are supporting. Building wikidata entities into a graph could be useful to guide user towards topics to its initial query, for instance. I'm sure this will be a subject of discussion at MoN4\/LOTE5.\nBest\n","comment_id":"20826","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, January 15, 2016 - 10:09","group_id":"5954"}},{"node":{"title":"So far so good with the wikipedia pageviews","content":"\nOk, just to report on what I have been able to assemble this week. Thanks to all, @Alberto, @maxlath, @mstn, @MoE, @dora for helping.\nI am now able to process a query about, let's say some keywords, find related wikidata entities (using maxlath's package), then grab relavant pages in any given (or all) languages,\nand then obtain pageview counts using tomayac's package (aka Thomas Steiner). Thomas' package however only offers daily counts -- simply because wikipedia does not offer more through their API for the moment. So, as @mstn suggests, we may use a DB that would store these counts (and I understand there is one).\nI plan to use the daily counts and the code chain so a user could query the counts concerning some disease, for instance. I could then use the count data and feed it back to the user through a d3 visualization.\nI will certainly have time to wrap this up in the coming days (although I have other code to pamper with a deadline for next Wed, so it may only be ready by the end of Jan).\nThere are tons of other things we could do. It all depends on the task we are supporting. Building wikidata entities into a graph could be useful to guide user towards topics to its initial query, for instance. I'm sure this will be a subject of discussion at MoN4\/LOTE5.\nBest\n","comment_id":"20826","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Friday, January 15, 2016 - 10:09","group_id":"5954"}},{"node":{"title":"we're getting there, thanks !","content":"\n@mstn @maxlath\nWow, thanks guys for coaching me and being so reactive and helpful.\nGuy\n","comment_id":"20810","post_id":"5744","user_id":"6399","parent_comment_id":"20807","creation_date":"Thursday, January 14, 2016 - 14:14","group_id":"5954"}},{"node":{"title":"we're getting there, thanks !","content":"\n@mstn @maxlath\nWow, thanks guys for coaching me and being so reactive and helpful.\nGuy\n","comment_id":"20810","post_id":"5744","user_id":"6399","parent_comment_id":"20807","creation_date":"Thursday, January 14, 2016 - 14:14","group_id":"5954"}},{"node":{"title":"we're getting there, thanks !","content":"\n@mstn @maxlath\nWow, thanks guys for coaching me and being so reactive and helpful.\nGuy\n","comment_id":"20810","post_id":"5744","user_id":"6399","parent_comment_id":"20807","creation_date":"Thursday, January 14, 2016 - 14:14","group_id":"5954"}},{"node":{"title":"to get Wikipedia urls from a","content":"\nto get Wikipedia urls from a Wikidata entity, you got to look in the sitelinks section of your entites. To do this from the API, make sure that you do query sitelinks, either by having \"props=sitelinks\" in your query (or props=sitelinks|claims|info|...) or no props parameter at all (then you get all properties).\nSo for instance, for Ebola (Q51993), you can query just the sitelinks like so: https:\/\/www.wikidata.org\/w\/api.php?action=wbgetentities&ids=Q51993&format=json&props=sitelinks\nand get\n{\n\u00a0 \"entities\": {\n\u00a0\u00a0\u00a0 \"Q51993\": {\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"type\": \"item\",\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"id\": \"Q51993\",\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"sitelinks\": {\n...\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"dewiki\": {\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"site\": \"dewiki\",\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"title\": \"Ebolafieber\",\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"badges\": []\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 }\n...\nIt's then up to you to rebuild the Wikipedia full URL using those data: \"https:\/\/#{2 letters lang code}.wikipedia.org\/wiki\/#{title}\"\n","comment_id":"20808","post_id":"5744","user_id":"440","parent_comment_id":"20806","creation_date":"Thursday, January 14, 2016 - 13:36","group_id":"5954"}},{"node":{"title":"to get Wikipedia urls from a","content":"\nto get Wikipedia urls from a Wikidata entity, you got to look in the sitelinks section of your entites. To do this from the API, make sure that you do query sitelinks, either by having \"props=sitelinks\" in your query (or props=sitelinks|claims|info|...) or no props parameter at all (then you get all properties).\nSo for instance, for Ebola (Q51993), you can query just the sitelinks like so: https:\/\/www.wikidata.org\/w\/api.php?action=wbgetentities&ids=Q51993&format=json&props=sitelinks\nand get\n{\n\u00a0 \"entities\": {\n\u00a0\u00a0\u00a0 \"Q51993\": {\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"type\": \"item\",\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"id\": \"Q51993\",\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"sitelinks\": {\n...\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"dewiki\": {\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"site\": \"dewiki\",\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"title\": \"Ebolafieber\",\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"badges\": []\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 }\n...\nIt's then up to you to rebuild the Wikipedia full URL using those data: \"https:\/\/#{2 letters lang code}.wikipedia.org\/wiki\/#{title}\"\n","comment_id":"20808","post_id":"5744","user_id":"440","parent_comment_id":"20806","creation_date":"Thursday, January 14, 2016 - 13:36","group_id":"5954"}},{"node":{"title":"to get Wikipedia urls from a","content":"\nto get Wikipedia urls from a Wikidata entity, you got to look in the sitelinks section of your entites. To do this from the API, make sure that you do query sitelinks, either by having \"props=sitelinks\" in your query (or props=sitelinks|claims|info|...) or no props parameter at all (then you get all properties).\nSo for instance, for Ebola (Q51993), you can query just the sitelinks like so: https:\/\/www.wikidata.org\/w\/api.php?action=wbgetentities&ids=Q51993&format=json&props=sitelinks\nand get\n{\n\u00a0 \"entities\": {\n\u00a0\u00a0\u00a0 \"Q51993\": {\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"type\": \"item\",\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"id\": \"Q51993\",\n\u00a0\u00a0\u00a0\u00a0\u00a0 \"sitelinks\": {\n...\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"dewiki\": {\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"site\": \"dewiki\",\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"title\": \"Ebolafieber\",\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \"badges\": []\n\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 }\n...\nIt's then up to you to rebuild the Wikipedia full URL using those data: \"https:\/\/#{2 letters lang code}.wikipedia.org\/wiki\/#{title}\"\n","comment_id":"20808","post_id":"5744","user_id":"440","parent_comment_id":"20806","creation_date":"Thursday, January 14, 2016 - 13:36","group_id":"5954"}},{"node":{"title":"Quick update","content":"\nHi there, I have a bunch of code I wrote during C3 I should push on gh. I am a bit overwhelmed by other nasty things. I hope to find some time maybe during this weekend.\nThe general idea was the following:\n1. Fetch medical terms (aka page titles in English) from the Wikipedia project on Medicine. Each term is stored in MongoDB in this form. wikidata field is taken from wikidata by title\u00a0\"1971 Iraq poison grain disaster\" (step 2). locales field is fetched from wikidata using max's tool 'fetch by OpenData ID' (step 3). Hours field is calculated using pagecounts (step 4).\n{ \"_id\" : INTERNAL_ID,\u00a0\"day\" : ISODate(\"2015-11-30T23:00:00Z\"), \"wikidata\" : { \"pageid\" : 4094969, \"ns\" : 0, \"title\" : \"Q4284220\", \"lastrevid\" : 248156717, \"modified\" : \"2015-09-06T00:45:47Z\", \"type\" : \"item\", \"id\" : \"Q4284220\" }, \"locales\" : { \"en\" : { \"title\" : \"1971 Iraq poison grain disaster\", \"hours\" : { \"0\" : 0, \"1\" : 0, \"2\" : 0, \"3\" : 0, \"4\" : 0, \"5\" : 0, \"6\" : 0, \"7\" : 0, \"8\" : 0, \"9\" : 0, \"10\" : 0, \"11\" : 0, \"12\" : 0, \"13\" : 0, \"14\" : 0, \"15\" : 0, \"16\" : 0, \"17\" : 0, \"18\" : 0, \"19\" : 0, \"20\" : 0, \"21\" : 0, \"22\" : 0, \"23\" : 0 }\u00a0}, \"es\" : { \"title\" : \"Desastre del grano envenenado de 1971 en Iraq\" }, \"ru\" : { \"title\" : \"\u041c\u0430\u0441\u0441\u043e\u0432\u043e\u0435 \u043e\u0442\u0440\u0430\u0432\u043b\u0435\u043d\u0438\u0435 \u043c\u0435\u0442\u0438\u043b\u0440\u0442\u0443\u0442\u044c\u044e \u0432 \u0418\u0440\u0430\u043a\u0435 (1971)\" } } }\n2. For each term find OpenData ID from page title. I built the request by hand without max's tool (but what I do is what the new functionality of max's tool does).\u00a0\n3. For each term with a known OD Id fetch OpenData details. In this way we are able to find titles for the same page in other languages. Of course, some languages could be missing. For example, there is no Italian entry for\u00a0\"1971 Iraq poison grain disaster\".\n4. Dump pagecount data and update corresponding entries in MongoDB with count information (only for medical terms).\nAll steps are implemented, but for (3) I am running out of memory and I need another smarter way to do it. I should split the pagecount file into several batches or preprocess terms we are interested in before.\nThe algorithm could be generalised in such a way that pagecounts and terms are updated automatically.\u00a0\nI use MongoDB to store (partial) results. Firstly, I need to store partial results somewhere because I can't process the whole thing in a single step and MongoDB is better than files. Then I was going to build a webapp backed with MongoDB with a sort of simulator of Wikipedia hits.\u00a0\nI do not know if this could help for now. I will back soon with the code.\n\u00a0\n","comment_id":"20807","post_id":"5744","user_id":"4760","parent_comment_id":"0","creation_date":"Thursday, January 14, 2016 - 13:31","group_id":"5954"}},{"node":{"title":"Quick update","content":"\nHi there, I have a bunch of code I wrote during C3 I should push on gh. I am a bit overwhelmed by other nasty things. I hope to find some time maybe during this weekend.\nThe general idea was the following:\n1. Fetch medical terms (aka page titles in English) from the Wikipedia project on Medicine. Each term is stored in MongoDB in this form. wikidata field is taken from wikidata by title\u00a0\"1971 Iraq poison grain disaster\" (step 2). locales field is fetched from wikidata using max's tool 'fetch by OpenData ID' (step 3). Hours field is calculated using pagecounts (step 4).\n{ \"_id\" : INTERNAL_ID,\u00a0\"day\" : ISODate(\"2015-11-30T23:00:00Z\"), \"wikidata\" : { \"pageid\" : 4094969, \"ns\" : 0, \"title\" : \"Q4284220\", \"lastrevid\" : 248156717, \"modified\" : \"2015-09-06T00:45:47Z\", \"type\" : \"item\", \"id\" : \"Q4284220\" }, \"locales\" : { \"en\" : { \"title\" : \"1971 Iraq poison grain disaster\", \"hours\" : { \"0\" : 0, \"1\" : 0, \"2\" : 0, \"3\" : 0, \"4\" : 0, \"5\" : 0, \"6\" : 0, \"7\" : 0, \"8\" : 0, \"9\" : 0, \"10\" : 0, \"11\" : 0, \"12\" : 0, \"13\" : 0, \"14\" : 0, \"15\" : 0, \"16\" : 0, \"17\" : 0, \"18\" : 0, \"19\" : 0, \"20\" : 0, \"21\" : 0, \"22\" : 0, \"23\" : 0 }\u00a0}, \"es\" : { \"title\" : \"Desastre del grano envenenado de 1971 en Iraq\" }, \"ru\" : { \"title\" : \"\u041c\u0430\u0441\u0441\u043e\u0432\u043e\u0435 \u043e\u0442\u0440\u0430\u0432\u043b\u0435\u043d\u0438\u0435 \u043c\u0435\u0442\u0438\u043b\u0440\u0442\u0443\u0442\u044c\u044e \u0432 \u0418\u0440\u0430\u043a\u0435 (1971)\" } } }\n2. For each term find OpenData ID from page title. I built the request by hand without max's tool (but what I do is what the new functionality of max's tool does).\u00a0\n3. For each term with a known OD Id fetch OpenData details. In this way we are able to find titles for the same page in other languages. Of course, some languages could be missing. For example, there is no Italian entry for\u00a0\"1971 Iraq poison grain disaster\".\n4. Dump pagecount data and update corresponding entries in MongoDB with count information (only for medical terms).\nAll steps are implemented, but for (3) I am running out of memory and I need another smarter way to do it. I should split the pagecount file into several batches or preprocess terms we are interested in before.\nThe algorithm could be generalised in such a way that pagecounts and terms are updated automatically.\u00a0\nI use MongoDB to store (partial) results. Firstly, I need to store partial results somewhere because I can't process the whole thing in a single step and MongoDB is better than files. Then I was going to build a webapp backed with MongoDB with a sort of simulator of Wikipedia hits.\u00a0\nI do not know if this could help for now. I will back soon with the code.\n\u00a0\n","comment_id":"20807","post_id":"5744","user_id":"4760","parent_comment_id":"0","creation_date":"Thursday, January 14, 2016 - 13:31","group_id":"5954"}},{"node":{"title":"Quick update","content":"\nHi there, I have a bunch of code I wrote during C3 I should push on gh. I am a bit overwhelmed by other nasty things. I hope to find some time maybe during this weekend.\nThe general idea was the following:\n1. Fetch medical terms (aka page titles in English) from the Wikipedia project on Medicine. Each term is stored in MongoDB in this form. wikidata field is taken from wikidata by title\u00a0\"1971 Iraq poison grain disaster\" (step 2). locales field is fetched from wikidata using max's tool 'fetch by OpenData ID' (step 3). Hours field is calculated using pagecounts (step 4).\n{ \"_id\" : INTERNAL_ID,\u00a0\"day\" : ISODate(\"2015-11-30T23:00:00Z\"), \"wikidata\" : { \"pageid\" : 4094969, \"ns\" : 0, \"title\" : \"Q4284220\", \"lastrevid\" : 248156717, \"modified\" : \"2015-09-06T00:45:47Z\", \"type\" : \"item\", \"id\" : \"Q4284220\" }, \"locales\" : { \"en\" : { \"title\" : \"1971 Iraq poison grain disaster\", \"hours\" : { \"0\" : 0, \"1\" : 0, \"2\" : 0, \"3\" : 0, \"4\" : 0, \"5\" : 0, \"6\" : 0, \"7\" : 0, \"8\" : 0, \"9\" : 0, \"10\" : 0, \"11\" : 0, \"12\" : 0, \"13\" : 0, \"14\" : 0, \"15\" : 0, \"16\" : 0, \"17\" : 0, \"18\" : 0, \"19\" : 0, \"20\" : 0, \"21\" : 0, \"22\" : 0, \"23\" : 0 }\u00a0}, \"es\" : { \"title\" : \"Desastre del grano envenenado de 1971 en Iraq\" }, \"ru\" : { \"title\" : \"\u041c\u0430\u0441\u0441\u043e\u0432\u043e\u0435 \u043e\u0442\u0440\u0430\u0432\u043b\u0435\u043d\u0438\u0435 \u043c\u0435\u0442\u0438\u043b\u0440\u0442\u0443\u0442\u044c\u044e \u0432 \u0418\u0440\u0430\u043a\u0435 (1971)\" } } }\n2. For each term find OpenData ID from page title. I built the request by hand without max's tool (but what I do is what the new functionality of max's tool does).\u00a0\n3. For each term with a known OD Id fetch OpenData details. In this way we are able to find titles for the same page in other languages. Of course, some languages could be missing. For example, there is no Italian entry for\u00a0\"1971 Iraq poison grain disaster\".\n4. Dump pagecount data and update corresponding entries in MongoDB with count information (only for medical terms).\nAll steps are implemented, but for (3) I am running out of memory and I need another smarter way to do it. I should split the pagecount file into several batches or preprocess terms we are interested in before.\nThe algorithm could be generalised in such a way that pagecounts and terms are updated automatically.\u00a0\nI use MongoDB to store (partial) results. Firstly, I need to store partial results somewhere because I can't process the whole thing in a single step and MongoDB is better than files. Then I was going to build a webapp backed with MongoDB with a sort of simulator of Wikipedia hits.\u00a0\nI do not know if this could help for now. I will back soon with the code.\n\u00a0\n","comment_id":"20807","post_id":"5744","user_id":"4760","parent_comment_id":"0","creation_date":"Thursday, January 14, 2016 - 13:31","group_id":"5954"}},{"node":{"title":"wikidata entity id -> wikipedia page entry ???","content":"\n-- Might also be of interest to @dora and @MoE (and of course @Alberto) --\nI've done quite \u00a0few experiments with @maxlath's code which got me comfortable with wikidata's api (and node.js and javascript in general). I do not see how I can easily manage to put my hands on a (the?) wikipedia page associated to a wikidata entry (in a given language) -- I actually do not see why there would be a one-to-one correspondance. One obvious, brute force, way to go would be to grab all html links listed on the right panel of a wikidata entry, but I am looking for a more elegant and efficient of doing things.\nAlso, it seems the pageviews.js package only offers daily page count :-(\nAny help is welcome.\n","comment_id":"20806","post_id":"5744","user_id":"6399","parent_comment_id":"20726","creation_date":"Thursday, January 14, 2016 - 12:53","group_id":"5954"}},{"node":{"title":"wikidata entity id -> wikipedia page entry ???","content":"\n-- Might also be of interest to @dora and @MoE (and of course @Alberto) --\nI've done quite \u00a0few experiments with @maxlath's code which got me comfortable with wikidata's api (and node.js and javascript in general). I do not see how I can easily manage to put my hands on a (the?) wikipedia page associated to a wikidata entry (in a given language) -- I actually do not see why there would be a one-to-one correspondance. One obvious, brute force, way to go would be to grab all html links listed on the right panel of a wikidata entry, but I am looking for a more elegant and efficient of doing things.\nAlso, it seems the pageviews.js package only offers daily page count :-(\nAny help is welcome.\n","comment_id":"20806","post_id":"5744","user_id":"6399","parent_comment_id":"20726","creation_date":"Thursday, January 14, 2016 - 12:53","group_id":"5954"}},{"node":{"title":"wikidata entity id -> wikipedia page entry ???","content":"\n-- Might also be of interest to @dora and @MoE (and of course @Alberto) --\nI've done quite \u00a0few experiments with @maxlath's code which got me comfortable with wikidata's api (and node.js and javascript in general). I do not see how I can easily manage to put my hands on a (the?) wikipedia page associated to a wikidata entry (in a given language) -- I actually do not see why there would be a one-to-one correspondance. One obvious, brute force, way to go would be to grab all html links listed on the right panel of a wikidata entry, but I am looking for a more elegant and efficient of doing things.\nAlso, it seems the pageviews.js package only offers daily page count :-(\nAny help is welcome.\n","comment_id":"20806","post_id":"5744","user_id":"6399","parent_comment_id":"20726","creation_date":"Thursday, January 14, 2016 - 12:53","group_id":"5954"}},{"node":{"title":"interested, joining soon","content":"\nhi @melancon, nice to meet you :)\nI'm definitely interested in joining the discussion.\nI've been following this and several other posts and tweets in the last few weeks; enough to get an idea of what is being discussed and considered. We've been discussing this ourselves a bit, with @dora.\nAt the same time, I admit I didn't have time to give it more attention, nor to start testing or researching myself on anything, just yet. I've been a bit swamped but I'm coming out of it now, hopefully :)\nAnyways just consider me in, reading and paying attention\n","comment_id":"20767","post_id":"5744","user_id":"4846","parent_comment_id":"20738","creation_date":"Wednesday, January 13, 2016 - 01:40","group_id":"5954"}},{"node":{"title":"interested, joining soon","content":"\nhi @melancon, nice to meet you :)\nI'm definitely interested in joining the discussion.\nI've been following this and several other posts and tweets in the last few weeks; enough to get an idea of what is being discussed and considered. We've been discussing this ourselves a bit, with @dora.\nAt the same time, I admit I didn't have time to give it more attention, nor to start testing or researching myself on anything, just yet. I've been a bit swamped but I'm coming out of it now, hopefully :)\nAnyways just consider me in, reading and paying attention\n","comment_id":"20767","post_id":"5744","user_id":"4846","parent_comment_id":"20738","creation_date":"Wednesday, January 13, 2016 - 01:40","group_id":"5954"}},{"node":{"title":"interested, joining soon","content":"\nhi @melancon, nice to meet you :)\nI'm definitely interested in joining the discussion.\nI've been following this and several other posts and tweets in the last few weeks; enough to get an idea of what is being discussed and considered. We've been discussing this ourselves a bit, with @dora.\nAt the same time, I admit I didn't have time to give it more attention, nor to start testing or researching myself on anything, just yet. I've been a bit swamped but I'm coming out of it now, hopefully :)\nAnyways just consider me in, reading and paying attention\n","comment_id":"20767","post_id":"5744","user_id":"4846","parent_comment_id":"20738","creation_date":"Wednesday, January 13, 2016 - 01:40","group_id":"5954"}},{"node":{"title":"https:\/\/github.com\/tomayac\/pageviews.js","content":"\nYep, I had located it and I plan to use it as well.\nI am new to javascript and I am learning as fast as I can to use jquery and ajax. I am trying to put up a small and malleable piece of code I could reuse and modify in the context of Mon4. One issue I cam across is the impossiblity to access out-of-domain content from a client. So I guess I have to design things splitted between server and client side.\nYour wikidata-sdk and pageviews code could be run on the client, while the server could grasp things such as the list of all pages titles, for instance.\nAny guidance on how to proceed is welcome. I understand you won't be with us at MoN4 and LOTE5? That's a pity :-)\nBest, Guy\n\u00a0\n","comment_id":"20755","post_id":"5744","user_id":"6399","parent_comment_id":"20754","creation_date":"Tuesday, January 12, 2016 - 15:25","group_id":"5954"}},{"node":{"title":"https:\/\/github.com\/tomayac\/pageviews.js","content":"\nYep, I had located it and I plan to use it as well.\nI am new to javascript and I am learning as fast as I can to use jquery and ajax. I am trying to put up a small and malleable piece of code I could reuse and modify in the context of Mon4. One issue I cam across is the impossiblity to access out-of-domain content from a client. So I guess I have to design things splitted between server and client side.\nYour wikidata-sdk and pageviews code could be run on the client, while the server could grasp things such as the list of all pages titles, for instance.\nAny guidance on how to proceed is welcome. I understand you won't be with us at MoN4 and LOTE5? That's a pity :-)\nBest, Guy\n\u00a0\n","comment_id":"20755","post_id":"5744","user_id":"6399","parent_comment_id":"20754","creation_date":"Tuesday, January 12, 2016 - 15:25","group_id":"5954"}},{"node":{"title":"https:\/\/github.com\/tomayac\/pageviews.js","content":"\nYep, I had located it and I plan to use it as well.\nI am new to javascript and I am learning as fast as I can to use jquery and ajax. I am trying to put up a small and malleable piece of code I could reuse and modify in the context of Mon4. One issue I cam across is the impossiblity to access out-of-domain content from a client. So I guess I have to design things splitted between server and client side.\nYour wikidata-sdk and pageviews code could be run on the client, while the server could grasp things such as the list of all pages titles, for instance.\nAny guidance on how to proceed is welcome. I understand you won't be with us at MoN4 and LOTE5? That's a pity :-)\nBest, Guy\n\u00a0\n","comment_id":"20755","post_id":"5744","user_id":"6399","parent_comment_id":"20754","creation_date":"Tuesday, January 12, 2016 - 15:25","group_id":"5954"}},{"node":{"title":"a lib and API that could be","content":"\na lib and API that could be of interest for your project:\npageviews.js : \"JavaScript client library for the Wikimedia Pageview API for Wikipedia and its sister projects.\"\n","comment_id":"20754","post_id":"5744","user_id":"440","parent_comment_id":"20726","creation_date":"Tuesday, January 12, 2016 - 14:39","group_id":"5954"}},{"node":{"title":"a lib and API that could be","content":"\na lib and API that could be of interest for your project:\npageviews.js : \"JavaScript client library for the Wikimedia Pageview API for Wikipedia and its sister projects.\"\n","comment_id":"20754","post_id":"5744","user_id":"440","parent_comment_id":"20726","creation_date":"Tuesday, January 12, 2016 - 14:39","group_id":"5954"}},{"node":{"title":"a lib and API that could be","content":"\na lib and API that could be of interest for your project:\npageviews.js : \"JavaScript client library for the Wikimedia Pageview API for Wikipedia and its sister projects.\"\n","comment_id":"20754","post_id":"5744","user_id":"440","parent_comment_id":"20726","creation_date":"Tuesday, January 12, 2016 - 14:39","group_id":"5954"}},{"node":{"title":"example puzzling result","content":"\nHi Max (I assume I can call you by that name ...),\n-- @Alberto @MoE @dora might also be interested to join this discussion, let's form a team heading to MoN4 (apart from @Alberto, I am unsure who will be there with us) --\nI take \"1% rule (aviation medicine)\" as title of a medicine page (https:\/\/en.wikipedia.org\/wiki\/1%25_rule_(aviation_medicine), part of the page referencing all medicine pages\u00a0https:\/\/en.wikipedia.org\/wiki\/Wikipedia:WikiProject_Medicine\/Lists_of_pages\/Articles).\nUsing the code snippets you provide on github, I understand I get a URL pointing at the corresponding wikidata entity: https:\/\/www.wikidata.org\/w\/api.php?action=wbsearchentities&search=1%25%20rule%20(aviation%20medicine)&language=en&limit=20&format=20\nWhen going to this entity I get a quite disappointing result:\n{\n    \"servedby\": \"mw1201\",\n    \"error\": {\n        \"code\": \"unknown_format\",\n        \"info\": \"Unrecognized value for parameter 'format': 20\",\n        \"*\": \"See https:\/\/www.wikidata.org\/w\/api.php for API usage\"\n    }\n}\nor using json format:\n{\n\n\n\n searchinfo:\u00a0\n \n  \u00a0\n \n  {\n \n  \n  \n   search:\u00a0\"1% rule (aviation medicine)\"\n  \n   \n \n  },\n\n \n\n\n search: [ ],\n\n \n\n\n success:\u00a01\n\n \n\n}\nIt may well have to do with this special page, or the use of the % special character (?). Things work fine when I work out the same snippet with other pages such as the next one ('1,1,1,2-Tetrafluoroethane') for which I get:\n{\n\n\n\n searchinfo:\u00a0\n \n  \u00a0\n \n  {\n \n  \n  \n   search:\u00a0\"1,1,1,2-Tetrafluoroethane\"\n  \n   \n \n  },\n\n \n\n\n search:\u00a0\n \n  \u00a0\n \n  [\n \n  \n  \n   \n    \u00a0\n   \n    {\n   \n    \n    \n     id:\u00a0\"Q423029\",\n    \n     \n    \n    \n     concepturi:\u00a0\"http:\/\/www.wikidata.org\/entity\/Q423029\",\n    \n     \n    \n    \n     url:\u00a0\"\/\/www.wikidata.org\/wiki\/Q423029\",\n    \n     \n    \n    \n     title:\u00a0\"Q423029\",\n    \n     \n    \n    \n     pageid:\u00a0399611,\n    \n     \n    \n    \n     label:\u00a0\"1,1,1,2-tetrafluoroethane\",\n    \n     \n    \n    \n     description:\u00a0\"haloalkane refrigerant\",\n    \n     \n    \n    \n     match:\u00a0\n     \n      \u00a0\n     \n      {\n     \n      \n      \n       type:\u00a0\"label\",\n      \n       \n      \n      \n       language:\u00a0\"en\",\n      \n       \n      \n      \n       text:\u00a0\"1,1,1,2-tetrafluoroethane\"\n      \n       \n     \n      }\n    \n     \n   \n    },\n  \n   \n  \n  \n   \n    \u00a0\n   \n    {\n   \n    \n    \n     id:\u00a0\"Q4545638\",\n    \n     \n    \n    \n     concepturi:\u00a0\"http:\/\/www.wikidata.org\/entity\/Q4545638\",\n    \n     \n    \n    \n     url:\u00a0\"\/\/www.wikidata.org\/wiki\/Q4545638\",\n    \n     \n    \n    \n     title:\u00a0\"Q4545638\",\n    \n     \n    \n    \n     pageid:\u00a04337472,\n    \n     \n    \n    \n     label:\u00a0\"1,1,1,2-tetrafluoroethane\",\n    \n     \n    \n    \n     match:\u00a0\n     \n      \u00a0\n     \n      {\n     \n      \n      \n       type:\u00a0\"label\",\n      \n       \n      \n      \n       language:\u00a0\"en\",\n      \n       \n      \n      \n       text:\u00a0\"1,1,1,2-tetrafluoroethane\"\n      \n       \n     \n      }\n    \n     \n   \n    }\n  \n   \n \n  ],\n\n \n\n\n success:\u00a01\n\n \n\n}\nI still have to learn how to properly use javascript and jquery so I can have everything work into a single script, and hopefully output useful visualization of page count timelines, for instance. I am also thinking about a rougher solution, grabbing pageviews data over longer time periods, and then computing similarity measures between pages based on these time evolving page views.\nAs far as MoN4 is concerned, what counts is we are in a position to easily manipulate tis type of data so we can react to questions people have, feed discussions with facts extracted from data analysis, build visuals supporting hypothesis building, etc.\n\u00a0\n","comment_id":"20738","post_id":"5744","user_id":"6399","parent_comment_id":"20725","creation_date":"Monday, January 11, 2016 - 15:54","group_id":"5954"}},{"node":{"title":"example puzzling result","content":"\nHi Max (I assume I can call you by that name ...),\n-- @Alberto @MoE @dora might also be interested to join this discussion, let's form a team heading to MoN4 (apart from @Alberto, I am unsure who will be there with us) --\nI take \"1% rule (aviation medicine)\" as title of a medicine page (https:\/\/en.wikipedia.org\/wiki\/1%25_rule_(aviation_medicine), part of the page referencing all medicine pages\u00a0https:\/\/en.wikipedia.org\/wiki\/Wikipedia:WikiProject_Medicine\/Lists_of_pages\/Articles).\nUsing the code snippets you provide on github, I understand I get a URL pointing at the corresponding wikidata entity: https:\/\/www.wikidata.org\/w\/api.php?action=wbsearchentities&search=1%25%20rule%20(aviation%20medicine)&language=en&limit=20&format=20\nWhen going to this entity I get a quite disappointing result:\n{\n    \"servedby\": \"mw1201\",\n    \"error\": {\n        \"code\": \"unknown_format\",\n        \"info\": \"Unrecognized value for parameter 'format': 20\",\n        \"*\": \"See https:\/\/www.wikidata.org\/w\/api.php for API usage\"\n    }\n}\nor using json format:\n{\n\n\n\n searchinfo:\u00a0\n \n  \u00a0\n \n  {\n \n  \n  \n   search:\u00a0\"1% rule (aviation medicine)\"\n  \n   \n \n  },\n\n \n\n\n search: [ ],\n\n \n\n\n success:\u00a01\n\n \n\n}\nIt may well have to do with this special page, or the use of the % special character (?). Things work fine when I work out the same snippet with other pages such as the next one ('1,1,1,2-Tetrafluoroethane') for which I get:\n{\n\n\n\n searchinfo:\u00a0\n \n  \u00a0\n \n  {\n \n  \n  \n   search:\u00a0\"1,1,1,2-Tetrafluoroethane\"\n  \n   \n \n  },\n\n \n\n\n search:\u00a0\n \n  \u00a0\n \n  [\n \n  \n  \n   \n    \u00a0\n   \n    {\n   \n    \n    \n     id:\u00a0\"Q423029\",\n    \n     \n    \n    \n     concepturi:\u00a0\"http:\/\/www.wikidata.org\/entity\/Q423029\",\n    \n     \n    \n    \n     url:\u00a0\"\/\/www.wikidata.org\/wiki\/Q423029\",\n    \n     \n    \n    \n     title:\u00a0\"Q423029\",\n    \n     \n    \n    \n     pageid:\u00a0399611,\n    \n     \n    \n    \n     label:\u00a0\"1,1,1,2-tetrafluoroethane\",\n    \n     \n    \n    \n     description:\u00a0\"haloalkane refrigerant\",\n    \n     \n    \n    \n     match:\u00a0\n     \n      \u00a0\n     \n      {\n     \n      \n      \n       type:\u00a0\"label\",\n      \n       \n      \n      \n       language:\u00a0\"en\",\n      \n       \n      \n      \n       text:\u00a0\"1,1,1,2-tetrafluoroethane\"\n      \n       \n     \n      }\n    \n     \n   \n    },\n  \n   \n  \n  \n   \n    \u00a0\n   \n    {\n   \n    \n    \n     id:\u00a0\"Q4545638\",\n    \n     \n    \n    \n     concepturi:\u00a0\"http:\/\/www.wikidata.org\/entity\/Q4545638\",\n    \n     \n    \n    \n     url:\u00a0\"\/\/www.wikidata.org\/wiki\/Q4545638\",\n    \n     \n    \n    \n     title:\u00a0\"Q4545638\",\n    \n     \n    \n    \n     pageid:\u00a04337472,\n    \n     \n    \n    \n     label:\u00a0\"1,1,1,2-tetrafluoroethane\",\n    \n     \n    \n    \n     match:\u00a0\n     \n      \u00a0\n     \n      {\n     \n      \n      \n       type:\u00a0\"label\",\n      \n       \n      \n      \n       language:\u00a0\"en\",\n      \n       \n      \n      \n       text:\u00a0\"1,1,1,2-tetrafluoroethane\"\n      \n       \n     \n      }\n    \n     \n   \n    }\n  \n   \n \n  ],\n\n \n\n\n success:\u00a01\n\n \n\n}\nI still have to learn how to properly use javascript and jquery so I can have everything work into a single script, and hopefully output useful visualization of page count timelines, for instance. I am also thinking about a rougher solution, grabbing pageviews data over longer time periods, and then computing similarity measures between pages based on these time evolving page views.\nAs far as MoN4 is concerned, what counts is we are in a position to easily manipulate tis type of data so we can react to questions people have, feed discussions with facts extracted from data analysis, build visuals supporting hypothesis building, etc.\n\u00a0\n","comment_id":"20738","post_id":"5744","user_id":"6399","parent_comment_id":"20725","creation_date":"Monday, January 11, 2016 - 15:54","group_id":"5954"}},{"node":{"title":"example puzzling result","content":"\nHi Max (I assume I can call you by that name ...),\n-- @Alberto @MoE @dora might also be interested to join this discussion, let's form a team heading to MoN4 (apart from @Alberto, I am unsure who will be there with us) --\nI take \"1% rule (aviation medicine)\" as title of a medicine page (https:\/\/en.wikipedia.org\/wiki\/1%25_rule_(aviation_medicine), part of the page referencing all medicine pages\u00a0https:\/\/en.wikipedia.org\/wiki\/Wikipedia:WikiProject_Medicine\/Lists_of_pages\/Articles).\nUsing the code snippets you provide on github, I understand I get a URL pointing at the corresponding wikidata entity: https:\/\/www.wikidata.org\/w\/api.php?action=wbsearchentities&search=1%25%20rule%20(aviation%20medicine)&language=en&limit=20&format=20\nWhen going to this entity I get a quite disappointing result:\n{\n    \"servedby\": \"mw1201\",\n    \"error\": {\n        \"code\": \"unknown_format\",\n        \"info\": \"Unrecognized value for parameter 'format': 20\",\n        \"*\": \"See https:\/\/www.wikidata.org\/w\/api.php for API usage\"\n    }\n}\nor using json format:\n{\n\n\n\n searchinfo:\u00a0\n \n  \u00a0\n \n  {\n \n  \n  \n   search:\u00a0\"1% rule (aviation medicine)\"\n  \n   \n \n  },\n\n \n\n\n search: [ ],\n\n \n\n\n success:\u00a01\n\n \n\n}\nIt may well have to do with this special page, or the use of the % special character (?). Things work fine when I work out the same snippet with other pages such as the next one ('1,1,1,2-Tetrafluoroethane') for which I get:\n{\n\n\n\n searchinfo:\u00a0\n \n  \u00a0\n \n  {\n \n  \n  \n   search:\u00a0\"1,1,1,2-Tetrafluoroethane\"\n  \n   \n \n  },\n\n \n\n\n search:\u00a0\n \n  \u00a0\n \n  [\n \n  \n  \n   \n    \u00a0\n   \n    {\n   \n    \n    \n     id:\u00a0\"Q423029\",\n    \n     \n    \n    \n     concepturi:\u00a0\"http:\/\/www.wikidata.org\/entity\/Q423029\",\n    \n     \n    \n    \n     url:\u00a0\"\/\/www.wikidata.org\/wiki\/Q423029\",\n    \n     \n    \n    \n     title:\u00a0\"Q423029\",\n    \n     \n    \n    \n     pageid:\u00a0399611,\n    \n     \n    \n    \n     label:\u00a0\"1,1,1,2-tetrafluoroethane\",\n    \n     \n    \n    \n     description:\u00a0\"haloalkane refrigerant\",\n    \n     \n    \n    \n     match:\u00a0\n     \n      \u00a0\n     \n      {\n     \n      \n      \n       type:\u00a0\"label\",\n      \n       \n      \n      \n       language:\u00a0\"en\",\n      \n       \n      \n      \n       text:\u00a0\"1,1,1,2-tetrafluoroethane\"\n      \n       \n     \n      }\n    \n     \n   \n    },\n  \n   \n  \n  \n   \n    \u00a0\n   \n    {\n   \n    \n    \n     id:\u00a0\"Q4545638\",\n    \n     \n    \n    \n     concepturi:\u00a0\"http:\/\/www.wikidata.org\/entity\/Q4545638\",\n    \n     \n    \n    \n     url:\u00a0\"\/\/www.wikidata.org\/wiki\/Q4545638\",\n    \n     \n    \n    \n     title:\u00a0\"Q4545638\",\n    \n     \n    \n    \n     pageid:\u00a04337472,\n    \n     \n    \n    \n     label:\u00a0\"1,1,1,2-tetrafluoroethane\",\n    \n     \n    \n    \n     match:\u00a0\n     \n      \u00a0\n     \n      {\n     \n      \n      \n       type:\u00a0\"label\",\n      \n       \n      \n      \n       language:\u00a0\"en\",\n      \n       \n      \n      \n       text:\u00a0\"1,1,1,2-tetrafluoroethane\"\n      \n       \n     \n      }\n    \n     \n   \n    }\n  \n   \n \n  ],\n\n \n\n\n success:\u00a01\n\n \n\n}\nI still have to learn how to properly use javascript and jquery so I can have everything work into a single script, and hopefully output useful visualization of page count timelines, for instance. I am also thinking about a rougher solution, grabbing pageviews data over longer time periods, and then computing similarity measures between pages based on these time evolving page views.\nAs far as MoN4 is concerned, what counts is we are in a position to easily manipulate tis type of data so we can react to questions people have, feed discussions with facts extracted from data analysis, build visuals supporting hypothesis building, etc.\n\u00a0\n","comment_id":"20738","post_id":"5744","user_id":"6399","parent_comment_id":"20725","creation_date":"Monday, January 11, 2016 - 15:54","group_id":"5954"}},{"node":{"title":"hello @melancon, I'm","content":"\nhello @melancon, I'm interested in knowing where you got blocked once you started using wikidata-sdk and also what to have examples of the urls returning empty results you where mentioning.\nOn the question of the interest of Wikidata to get page view statistics, two things make it particularly interesting:\n\nWikidata being structured data, it can be queried it in all sorts of way using the SPARQL endpoint (for which there is no helper in Wikidata-sdk yet): for instance, here is the list of all beers or subclass of beers in Wikidata (the result in JSON)\nevery Wikidata entities centralize links to Wikipedia pages in all languages (see \"sitelinks\" in the API results)\nWikidata ids are meant to be stable, while Wikipedia titles can changes, making the maintaining your project on the long run harder\n\n\u00a0\n","comment_id":"20725","post_id":"5744","user_id":"440","parent_comment_id":"20722","creation_date":"Monday, January 11, 2016 - 11:34","group_id":"5954"}},{"node":{"title":"hello @melancon, I'm","content":"\nhello @melancon, I'm interested in knowing where you got blocked once you started using wikidata-sdk and also what to have examples of the urls returning empty results you where mentioning.\nOn the question of the interest of Wikidata to get page view statistics, two things make it particularly interesting:\n\nWikidata being structured data, it can be queried it in all sorts of way using the SPARQL endpoint (for which there is no helper in Wikidata-sdk yet): for instance, here is the list of all beers or subclass of beers in Wikidata (the result in JSON)\nevery Wikidata entities centralize links to Wikipedia pages in all languages (see \"sitelinks\" in the API results)\nWikidata ids are meant to be stable, while Wikipedia titles can changes, making the maintaining your project on the long run harder\n\n\u00a0\n","comment_id":"20725","post_id":"5744","user_id":"440","parent_comment_id":"20722","creation_date":"Monday, January 11, 2016 - 11:34","group_id":"5954"}},{"node":{"title":"hello @melancon, I'm","content":"\nhello @melancon, I'm interested in knowing where you got blocked once you started using wikidata-sdk and also what to have examples of the urls returning empty results you where mentioning.\nOn the question of the interest of Wikidata to get page view statistics, two things make it particularly interesting:\n\nWikidata being structured data, it can be queried it in all sorts of way using the SPARQL endpoint (for which there is no helper in Wikidata-sdk yet): for instance, here is the list of all beers or subclass of beers in Wikidata (the result in JSON)\nevery Wikidata entities centralize links to Wikipedia pages in all languages (see \"sitelinks\" in the API results)\nWikidata ids are meant to be stable, while Wikipedia titles can changes, making the maintaining your project on the long run harder\n\n\u00a0\n","comment_id":"20725","post_id":"5744","user_id":"440","parent_comment_id":"20722","creation_date":"Monday, January 11, 2016 - 11:34","group_id":"5954"}},{"node":{"title":"WIkidata and page counts","content":"\n@melancon, I was thinking to combine WikiData entities and page count data as follows.\n\nStart from the list of English-language Wikipedia page titles of WikiProject: Medicine.\u00a0\nfor each page on that list, use @maxlath's tool to get the WikiData item from the title. For example, cholera:\u00a0https:\/\/www.wikidata.org\/wiki\/Q12090\nuse the item to get the titles of\u00a0all\u00a0the Wikipedia pages (in all languages) that are about that item. The item corresponding to cholera (12090), for example, refers to 112 pages (in: Ac\u00e8n, Afrikaans, Alemannisch, Aragon\u00e8s, Arabic...)\nFor each page associated to the WikiData item, read the number of pageviews in the\u00a0hourly pageviews stats data dumps (organized by page title and not by WikiData item).\u00a0\n\nNotice that the test we ran at 32C3 (results) did not do this. We estimated 184,000 views to medicine-related articles in the sample hour, but that referred almost only to English-language Wikipedia. The one exception are names, for example the page \"Louis Pasteur\" has the same title in the Wikipedias of all languages, or at least all that use the Latin alphabet.\u00a0\nAlso notice that @MoE\u00a0and @dora\u00a0would also like to participate in MoN.\u00a0\n","comment_id":"20726","post_id":"5744","user_id":"34","parent_comment_id":"20722","creation_date":"Monday, January 11, 2016 - 11:17","group_id":"5954"}},{"node":{"title":"WIkidata and page counts","content":"\n@melancon, I was thinking to combine WikiData entities and page count data as follows.\n\nStart from the list of English-language Wikipedia page titles of WikiProject: Medicine.\u00a0\nfor each page on that list, use @maxlath's tool to get the WikiData item from the title. For example, cholera:\u00a0https:\/\/www.wikidata.org\/wiki\/Q12090\nuse the item to get the titles of\u00a0all\u00a0the Wikipedia pages (in all languages) that are about that item. The item corresponding to cholera (12090), for example, refers to 112 pages (in: Ac\u00e8n, Afrikaans, Alemannisch, Aragon\u00e8s, Arabic...)\nFor each page associated to the WikiData item, read the number of pageviews in the\u00a0hourly pageviews stats data dumps (organized by page title and not by WikiData item).\u00a0\n\nNotice that the test we ran at 32C3 (results) did not do this. We estimated 184,000 views to medicine-related articles in the sample hour, but that referred almost only to English-language Wikipedia. The one exception are names, for example the page \"Louis Pasteur\" has the same title in the Wikipedias of all languages, or at least all that use the Latin alphabet.\u00a0\nAlso notice that @MoE\u00a0and @dora\u00a0would also like to participate in MoN.\u00a0\n","comment_id":"20726","post_id":"5744","user_id":"34","parent_comment_id":"20722","creation_date":"Monday, January 11, 2016 - 11:17","group_id":"5954"}},{"node":{"title":"WIkidata and page counts","content":"\n@melancon, I was thinking to combine WikiData entities and page count data as follows.\n\nStart from the list of English-language Wikipedia page titles of WikiProject: Medicine.\u00a0\nfor each page on that list, use @maxlath's tool to get the WikiData item from the title. For example, cholera:\u00a0https:\/\/www.wikidata.org\/wiki\/Q12090\nuse the item to get the titles of\u00a0all\u00a0the Wikipedia pages (in all languages) that are about that item. The item corresponding to cholera (12090), for example, refers to 112 pages (in: Ac\u00e8n, Afrikaans, Alemannisch, Aragon\u00e8s, Arabic...)\nFor each page associated to the WikiData item, read the number of pageviews in the\u00a0hourly pageviews stats data dumps (organized by page title and not by WikiData item).\u00a0\n\nNotice that the test we ran at 32C3 (results) did not do this. We estimated 184,000 views to medicine-related articles in the sample hour, but that referred almost only to English-language Wikipedia. The one exception are names, for example the page \"Louis Pasteur\" has the same title in the Wikipedias of all languages, or at least all that use the Latin alphabet.\u00a0\nAlso notice that @MoE\u00a0and @dora\u00a0would also like to participate in MoN.\u00a0\n","comment_id":"20726","post_id":"5744","user_id":"34","parent_comment_id":"20722","creation_date":"Monday, January 11, 2016 - 11:17","group_id":"5954"}},{"node":{"title":"wikidata-sdk","content":"\nI played with @maxlath code to see how we could use it to prepare for Mon4. The tool is great, thanks @maxlath. I am however unsure how I can use it in a straightforward manner and combine this with page counts, for instance.\nThat is, I foresee the advantage of working with wikidata entities to properly index page content, but having access to the wikidata entities does not solve our problem of counting page visits in an effort to understand how people use wikipedia pages for auto-diagnosis.\nMaybe @maxlath, because he is the designer of the wikidata-sdk, can help us (or at least me)?\nP.S. I also have a few questions on how urls returned by running the various search routines can be used. I have unsuccessfully tried to access those urls with my browsers and I sometimes get empty content.\n","comment_id":"20722","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 11, 2016 - 10:16","group_id":"5954"}},{"node":{"title":"wikidata-sdk","content":"\nI played with @maxlath code to see how we could use it to prepare for Mon4. The tool is great, thanks @maxlath. I am however unsure how I can use it in a straightforward manner and combine this with page counts, for instance.\nThat is, I foresee the advantage of working with wikidata entities to properly index page content, but having access to the wikidata entities does not solve our problem of counting page visits in an effort to understand how people use wikipedia pages for auto-diagnosis.\nMaybe @maxlath, because he is the designer of the wikidata-sdk, can help us (or at least me)?\nP.S. I also have a few questions on how urls returned by running the various search routines can be used. I have unsuccessfully tried to access those urls with my browsers and I sometimes get empty content.\n","comment_id":"20722","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 11, 2016 - 10:16","group_id":"5954"}},{"node":{"title":"wikidata-sdk","content":"\nI played with @maxlath code to see how we could use it to prepare for Mon4. The tool is great, thanks @maxlath. I am however unsure how I can use it in a straightforward manner and combine this with page counts, for instance.\nThat is, I foresee the advantage of working with wikidata entities to properly index page content, but having access to the wikidata entities does not solve our problem of counting page visits in an effort to understand how people use wikipedia pages for auto-diagnosis.\nMaybe @maxlath, because he is the designer of the wikidata-sdk, can help us (or at least me)?\nP.S. I also have a few questions on how urls returned by running the various search routines can be used. I have unsuccessfully tried to access those urls with my browsers and I sometimes get empty content.\n","comment_id":"20722","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 11, 2016 - 10:16","group_id":"5954"}},{"node":{"title":"Proposal to Re:Publica submitted!","content":"\nfingers crossed!\n","comment_id":"20706","post_id":"5749","user_id":"45","parent_comment_id":"0","creation_date":"Sunday, January 10, 2016 - 16:51","group_id":"5954"}},{"node":{"title":"Proposal to Re:Publica submitted!","content":"\nfingers crossed!\n","comment_id":"20706","post_id":"5749","user_id":"45","parent_comment_id":"0","creation_date":"Sunday, January 10, 2016 - 16:51","group_id":"5954"}},{"node":{"title":"Javascript tool for querying WikiData","content":"\nThe generous @maxlath\u00a0has just posted a tool that does exactly what we were trying to do in Hamburg: get WikiData entities by Wikipedia article title.\u00a0\nhttps:\/\/github.com\/maxlath\/wikidata-sdk#get-entities-by-wikipedia-titles\n\u00a0\n","comment_id":"20665","post_id":"5744","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, January 7, 2016 - 16:07","group_id":"5954"}},{"node":{"title":"Javascript tool for querying WikiData","content":"\nThe generous @maxlath\u00a0has just posted a tool that does exactly what we were trying to do in Hamburg: get WikiData entities by Wikipedia article title.\u00a0\nhttps:\/\/github.com\/maxlath\/wikidata-sdk#get-entities-by-wikipedia-titles\n\u00a0\n","comment_id":"20665","post_id":"5744","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, January 7, 2016 - 16:07","group_id":"5954"}},{"node":{"title":"Javascript tool for querying WikiData","content":"\nThe generous @maxlath\u00a0has just posted a tool that does exactly what we were trying to do in Hamburg: get WikiData entities by Wikipedia article title.\u00a0\nhttps:\/\/github.com\/maxlath\/wikidata-sdk#get-entities-by-wikipedia-titles\n\u00a0\n","comment_id":"20665","post_id":"5744","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, January 7, 2016 - 16:07","group_id":"5954"}},{"node":{"title":"What is this for?","content":"\n@melancon\u00a0is a scientist. Rightly, he demands a well-defined question. Here's my take.\nWe investigate the size and scope (both in physical space and disciplinary space) of the phenomenon of participatory diagnosis. Folk knowledge tells us use Wikipedia and other Internet resources to diagnose their own conditions, or cross-check a diagnosis made by a physician. The question is: how widespread is the phenomenon? By looking at pageview counts, we can already get unexpected results. I did NOT expect that 95% of all English-language pages in WikiProject: Medicine would be viewed in a randomly chosen hour. Nor did I expect that the top pages would draw 500 hits in an hour. As we refine the query with geographical and other information, we might learn more interesting stuff.\nBut also, this is a rhetorical move. It is meant to draw attention of policy makers and health professionals on collective intelligence. Wikipedia is built by a community, and used by a community. Collective intelligence is already an important player in care: so, people should pay attention to OpenCare.\n","comment_id":"20652","post_id":"5744","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, January 6, 2016 - 12:03","group_id":"5954"}},{"node":{"title":"What is this for?","content":"\n@melancon\u00a0is a scientist. Rightly, he demands a well-defined question. Here's my take.\nWe investigate the size and scope (both in physical space and disciplinary space) of the phenomenon of participatory diagnosis. Folk knowledge tells us use Wikipedia and other Internet resources to diagnose their own conditions, or cross-check a diagnosis made by a physician. The question is: how widespread is the phenomenon? By looking at pageview counts, we can already get unexpected results. I did NOT expect that 95% of all English-language pages in WikiProject: Medicine would be viewed in a randomly chosen hour. Nor did I expect that the top pages would draw 500 hits in an hour. As we refine the query with geographical and other information, we might learn more interesting stuff.\nBut also, this is a rhetorical move. It is meant to draw attention of policy makers and health professionals on collective intelligence. Wikipedia is built by a community, and used by a community. Collective intelligence is already an important player in care: so, people should pay attention to OpenCare.\n","comment_id":"20652","post_id":"5744","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, January 6, 2016 - 12:03","group_id":"5954"}},{"node":{"title":"What is this for?","content":"\n@melancon\u00a0is a scientist. Rightly, he demands a well-defined question. Here's my take.\nWe investigate the size and scope (both in physical space and disciplinary space) of the phenomenon of participatory diagnosis. Folk knowledge tells us use Wikipedia and other Internet resources to diagnose their own conditions, or cross-check a diagnosis made by a physician. The question is: how widespread is the phenomenon? By looking at pageview counts, we can already get unexpected results. I did NOT expect that 95% of all English-language pages in WikiProject: Medicine would be viewed in a randomly chosen hour. Nor did I expect that the top pages would draw 500 hits in an hour. As we refine the query with geographical and other information, we might learn more interesting stuff.\nBut also, this is a rhetorical move. It is meant to draw attention of policy makers and health professionals on collective intelligence. Wikipedia is built by a community, and used by a community. Collective intelligence is already an important player in care: so, people should pay attention to OpenCare.\n","comment_id":"20652","post_id":"5744","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, January 6, 2016 - 12:03","group_id":"5954"}},{"node":{"title":"Interesting, thanks for sharing","content":"\nSomeone else mentioned republica at #32c3, I've never been. Any idea what its like?\n","comment_id":"20631","post_id":"5749","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, January 5, 2016 - 10:52","group_id":"5954"}},{"node":{"title":"Interesting, thanks for sharing","content":"\nSomeone else mentioned republica at #32c3, I've never been. Any idea what its like?\n","comment_id":"20631","post_id":"5749","user_id":"45","parent_comment_id":"0","creation_date":"Tuesday, January 5, 2016 - 10:52","group_id":"5954"}},{"node":{"title":"Working on it","content":"\nI've also some notes about the data structure, that I've to refine and put on github. Hope to do this by tomorrow (taking advantage of holiday in Italy).\n","comment_id":"20630","post_id":"5744","user_id":"4749","parent_comment_id":"0","creation_date":"Tuesday, January 5, 2016 - 10:31","group_id":"5954"}},{"node":{"title":"Working on it","content":"\nI've also some notes about the data structure, that I've to refine and put on github. Hope to do this by tomorrow (taking advantage of holiday in Italy).\n","comment_id":"20630","post_id":"5744","user_id":"4749","parent_comment_id":"0","creation_date":"Tuesday, January 5, 2016 - 10:31","group_id":"5954"}},{"node":{"title":"Working on it","content":"\nI've also some notes about the data structure, that I've to refine and put on github. Hope to do this by tomorrow (taking advantage of holiday in Italy).\n","comment_id":"20630","post_id":"5744","user_id":"4749","parent_comment_id":"0","creation_date":"Tuesday, January 5, 2016 - 10:31","group_id":"5954"}},{"node":{"title":"Is it that simple?","content":"\nI owe you a big thank. I realize I was looking at project counts, which use codes that do not look like page name at all ... Fail\/Unfail is also about sometimes being a bit dumb -- but hey, learning is about doing things you never did before :-)\nWe should then be able to put up a process to test a few ideas. I'll report on this thread when I have something new.\n","comment_id":"20625","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 18:12","group_id":"5954"}},{"node":{"title":"Is it that simple?","content":"\nI owe you a big thank. I realize I was looking at project counts, which use codes that do not look like page name at all ... Fail\/Unfail is also about sometimes being a bit dumb -- but hey, learning is about doing things you never did before :-)\nWe should then be able to put up a process to test a few ideas. I'll report on this thread when I have something new.\n","comment_id":"20625","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 18:12","group_id":"5954"}},{"node":{"title":"Is it that simple?","content":"\nI owe you a big thank. I realize I was looking at project counts, which use codes that do not look like page name at all ... Fail\/Unfail is also about sometimes being a bit dumb -- but hey, learning is about doing things you never did before :-)\nWe should then be able to put up a process to test a few ideas. I'll report on this thread when I have something new.\n","comment_id":"20625","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 18:12","group_id":"5954"}},{"node":{"title":"but that link lists the pages","content":"\nbut that link lists the pages as, for instance,\u00a0\/wiki\/1858_Bradford_sweets_poisoning\nOnce you chop off the \/wiki\/, you get the page code, and can look up:\nen 1858_Bradford_sweets_poisoning 1 19153\n\u00a0\n\u00a0\n","comment_id":"20622","post_id":"5744","user_id":"3892","parent_comment_id":"20621","creation_date":"Monday, January 4, 2016 - 17:53","group_id":"5954"}},{"node":{"title":"but that link lists the pages","content":"\nbut that link lists the pages as, for instance,\u00a0\/wiki\/1858_Bradford_sweets_poisoning\nOnce you chop off the \/wiki\/, you get the page code, and can look up:\nen 1858_Bradford_sweets_poisoning 1 19153\n\u00a0\n\u00a0\n","comment_id":"20622","post_id":"5744","user_id":"3892","parent_comment_id":"20621","creation_date":"Monday, January 4, 2016 - 17:53","group_id":"5954"}},{"node":{"title":"but that link lists the pages","content":"\nbut that link lists the pages as, for instance,\u00a0\/wiki\/1858_Bradford_sweets_poisoning\nOnce you chop off the \/wiki\/, you get the page code, and can look up:\nen 1858_Bradford_sweets_poisoning 1 19153\n\u00a0\n\u00a0\n","comment_id":"20622","post_id":"5744","user_id":"3892","parent_comment_id":"20621","creation_date":"Monday, January 4, 2016 - 17:53","group_id":"5954"}},{"node":{"title":"Good point ...","content":"\nbut ... The thing is I'm am not interested in the whole wikipedia but only in the medicine page subset. Now, as far as I could see, I can put my hands on the set of all medicine pages by their names\u00a0-- but not their ... code ...\nSince the page counts are given using a map code -> count, I do need the code for the medicine pages to filter out counts of the medicine pages.\n?\n","comment_id":"20621","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 17:39","group_id":"5954"}},{"node":{"title":"Good point ...","content":"\nbut ... The thing is I'm am not interested in the whole wikipedia but only in the medicine page subset. Now, as far as I could see, I can put my hands on the set of all medicine pages by their names\u00a0-- but not their ... code ...\nSince the page counts are given using a map code -> count, I do need the code for the medicine pages to filter out counts of the medicine pages.\n?\n","comment_id":"20621","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 17:39","group_id":"5954"}},{"node":{"title":"Good point ...","content":"\nbut ... The thing is I'm am not interested in the whole wikipedia but only in the medicine page subset. Now, as far as I could see, I can put my hands on the set of all medicine pages by their names\u00a0-- but not their ... code ...\nSince the page counts are given using a map code -> count, I do need the code for the medicine pages to filter out counts of the medicine pages.\n?\n","comment_id":"20621","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 17:39","group_id":"5954"}},{"node":{"title":"do you need it?","content":"\ndo you really need the whole map code  page?\nFor a first attempt, I'd assume starting with just english wikipedia -- so you just filter the dump down to en, and interpret them as\u00a0en.wikipedia.org\/wiki\/[pagename]\n","comment_id":"20620","post_id":"5744","user_id":"3892","parent_comment_id":"20619","creation_date":"Monday, January 4, 2016 - 17:22","group_id":"5954"}},{"node":{"title":"do you need it?","content":"\ndo you really need the whole map code  page?\nFor a first attempt, I'd assume starting with just english wikipedia -- so you just filter the dump down to en, and interpret them as\u00a0en.wikipedia.org\/wiki\/[pagename]\n","comment_id":"20620","post_id":"5744","user_id":"3892","parent_comment_id":"20619","creation_date":"Monday, January 4, 2016 - 17:22","group_id":"5954"}},{"node":{"title":"do you need it?","content":"\ndo you really need the whole map code  page?\nFor a first attempt, I'd assume starting with just english wikipedia -- so you just filter the dump down to en, and interpret them as\u00a0en.wikipedia.org\/wiki\/[pagename]\n","comment_id":"20620","post_id":"5744","user_id":"3892","parent_comment_id":"20619","creation_date":"Monday, January 4, 2016 - 17:22","group_id":"5954"}},{"node":{"title":"Wikipedia\/media domain coding scheme","content":"\n@Alberto\nI spent time looking at wikipedia pagecount dumps to see how easy\/difficult it would be to build a DB to get on with this project -- at least try things to see how feasible it is.\nI spent time looking for the wikipedia domain and page coding scheme. Reading about how page counts are stored, I understood pages get coded into shorter sequences such as\u00a0en + Main_Page to stand for\u00a0en.wikipedia.org\/wiki\/Main_Page. But I didn't find any place where I could access the whole map code  page.\nAnyone has ever come across this piece of information?\n","comment_id":"20619","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 17:10","group_id":"5954"}},{"node":{"title":"Wikipedia\/media domain coding scheme","content":"\n@Alberto\nI spent time looking at wikipedia pagecount dumps to see how easy\/difficult it would be to build a DB to get on with this project -- at least try things to see how feasible it is.\nI spent time looking for the wikipedia domain and page coding scheme. Reading about how page counts are stored, I understood pages get coded into shorter sequences such as\u00a0en + Main_Page to stand for\u00a0en.wikipedia.org\/wiki\/Main_Page. But I didn't find any place where I could access the whole map code  page.\nAnyone has ever come across this piece of information?\n","comment_id":"20619","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 17:10","group_id":"5954"}},{"node":{"title":"Wikipedia\/media domain coding scheme","content":"\n@Alberto\nI spent time looking at wikipedia pagecount dumps to see how easy\/difficult it would be to build a DB to get on with this project -- at least try things to see how feasible it is.\nI spent time looking for the wikipedia domain and page coding scheme. Reading about how page counts are stored, I understood pages get coded into shorter sequences such as\u00a0en + Main_Page to stand for\u00a0en.wikipedia.org\/wiki\/Main_Page. But I didn't find any place where I could access the whole map code  page.\nAnyone has ever come across this piece of information?\n","comment_id":"20619","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 17:10","group_id":"5954"}},{"node":{"title":"Great work - Good job!","content":"\n@Alberto I actually answer my own question ... I went on the github repository and read the document you posted. I see the line of reasoning you have, the strategy you envisage. What I miss is the information you expect to get from analyzing the data. That would for instance help me figure out a possible viz. Digg indeed is a good idea. But that all depends on what you want to find, or what service you hope to deliver from digging into the data.\n","comment_id":"20615","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 13:21","group_id":"5954"}},{"node":{"title":"Great work - Good job!","content":"\n@Alberto I actually answer my own question ... I went on the github repository and read the document you posted. I see the line of reasoning you have, the strategy you envisage. What I miss is the information you expect to get from analyzing the data. That would for instance help me figure out a possible viz. Digg indeed is a good idea. But that all depends on what you want to find, or what service you hope to deliver from digging into the data.\n","comment_id":"20615","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 13:21","group_id":"5954"}},{"node":{"title":"Great work - Good job!","content":"\n@Alberto I actually answer my own question ... I went on the github repository and read the document you posted. I see the line of reasoning you have, the strategy you envisage. What I miss is the information you expect to get from analyzing the data. That would for instance help me figure out a possible viz. Digg indeed is a good idea. But that all depends on what you want to find, or what service you hope to deliver from digging into the data.\n","comment_id":"20615","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 13:21","group_id":"5954"}},{"node":{"title":"Wikipedia\/media data models","content":"\n@Alberto\u00a0How are things going, is there a chance we could use this in Feb?\n","comment_id":"20614","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 13:08","group_id":"5954"}},{"node":{"title":"Wikipedia\/media data models","content":"\n@Alberto\u00a0How are things going, is there a chance we could use this in Feb?\n","comment_id":"20614","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 13:08","group_id":"5954"}},{"node":{"title":"Wikipedia\/media data models","content":"\n@Alberto\u00a0How are things going, is there a chance we could use this in Feb?\n","comment_id":"20614","post_id":"5744","user_id":"6399","parent_comment_id":"0","creation_date":"Monday, January 4, 2016 - 13:08","group_id":"5954"}},{"node":{"title":"Fingers crossed","content":"\nWell done Marco, @Irene Lanza\u00a0& Henrik. And welcome on board to Irene, new Edgeryder.\nI've only heard of teaching echolocation \"manually\" via examples like Daniel Kish's (\"Batman\") school for children. And through handheld devices and more recently a mobile app (?), but those are mediating the environment, as you rightly point out. Kudos for the open approach, and thinking about community members who might be interested in this.\nMaybe Alison Smith from Pesky People..? hm.\n","comment_id":"20503","post_id":"5718","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, December 22, 2015 - 19:07","group_id":"4260"}},{"node":{"title":"I'll be at 32C3","content":"\nSo I'm available to better understand the project and participate if some activities are envisaged.\n","comment_id":"20479","post_id":"5678","user_id":"4749","parent_comment_id":"0","creation_date":"Sunday, December 20, 2015 - 18:30","group_id":"5954"}},{"node":{"title":"I'll be at 32C3","content":"\nSo I'm available to better understand the project and participate if some activities are envisaged.\n","comment_id":"20479","post_id":"5678","user_id":"4749","parent_comment_id":"0","creation_date":"Sunday, December 20, 2015 - 18:30","group_id":"5954"}},{"node":{"title":"I've been talking with Costantino and our attitude is","content":"\nmore to explore the event, participate to interesting topics of the program especially related to Opencare areas.\nWe've never been to C3 so actually we'd like to be more focused on listening and learning, \u00a0taking notes on relevant things, asking questions and meeting people.\u00a0\nbest\nZ\n\u00a0\n","comment_id":"20367","post_id":"5678","user_id":"3855","parent_comment_id":"0","creation_date":"Sunday, December 13, 2015 - 17:52","group_id":"5954"}},{"node":{"title":"I've been talking with Costantino and our attitude is","content":"\nmore to explore the event, participate to interesting topics of the program especially related to Opencare areas.\nWe've never been to C3 so actually we'd like to be more focused on listening and learning, \u00a0taking notes on relevant things, asking questions and meeting people.\u00a0\nbest\nZ\n\u00a0\n","comment_id":"20367","post_id":"5678","user_id":"3855","parent_comment_id":"0","creation_date":"Sunday, December 13, 2015 - 17:52","group_id":"5954"}},{"node":{"title":"I'm there","content":"\nThe only thing I declined was Nadias offer of accomodation since I'm staying with my sister.\u00a0\n32c3 might be a good opportunity to collect examples of existing projects?\nI can make a presentation on quasi-markets, non-monetary (non profit) incentives for innovation and dissmination of knowledge (when the price system cannot be used, as in public sector settings).\u00a0\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"20336","post_id":"5678","user_id":"6412","parent_comment_id":"0","creation_date":"Thursday, December 10, 2015 - 17:38","group_id":"5954"}},{"node":{"title":"I'm there","content":"\nThe only thing I declined was Nadias offer of accomodation since I'm staying with my sister.\u00a0\n32c3 might be a good opportunity to collect examples of existing projects?\nI can make a presentation on quasi-markets, non-monetary (non profit) incentives for innovation and dissmination of knowledge (when the price system cannot be used, as in public sector settings).\u00a0\n\u00a0\n\u00a0\n\u00a0\n","comment_id":"20336","post_id":"5678","user_id":"6412","parent_comment_id":"0","creation_date":"Thursday, December 10, 2015 - 17:38","group_id":"5954"}},{"node":{"title":"pinned!","content":"\nhttps:\/\/www.pinterest.com\/costantinob\/opencare\/\n","comment_id":"20270","post_id":"5650","user_id":"2604","parent_comment_id":"0","creation_date":"Monday, December 7, 2015 - 15:27","group_id":"5954"}},{"node":{"title":"pinned!","content":"\nhttps:\/\/www.pinterest.com\/costantinob\/opencare\/\n","comment_id":"20270","post_id":"5650","user_id":"2604","parent_comment_id":"0","creation_date":"Monday, December 7, 2015 - 15:27","group_id":"5954"}},{"node":{"title":"Indeed ","content":"\n\nVery cool.\n","comment_id":"20106","post_id":"5628","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, November 25, 2015 - 09:57","group_id":"5954"}},{"node":{"title":"Indeed ","content":"\n\nVery cool.\n","comment_id":"20106","post_id":"5628","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, November 25, 2015 - 09:57","group_id":"5954"}},{"node":{"title":"Conflict with prior appointment...","content":"\nUnfortunately I would still be in Warsaw that day, where I accepted to serve on a panel on research evaluation for the Polish Government.\n\nI am more than willing though to have a wide and wild conversation with whoever will go to Paris, about anything he\/she might feel to miss, that I could provide.\n","comment_id":"20067","post_id":"5617","user_id":"2424","parent_comment_id":"20043","creation_date":"Monday, November 23, 2015 - 11:41","group_id":"5954"}},{"node":{"title":"Conflict with prior appointment...","content":"\nUnfortunately I would still be in Warsaw that day, where I accepted to serve on a panel on research evaluation for the Polish Government.\n\nI am more than willing though to have a wide and wild conversation with whoever will go to Paris, about anything he\/she might feel to miss, that I could provide.\n","comment_id":"20067","post_id":"5617","user_id":"2424","parent_comment_id":"20043","creation_date":"Monday, November 23, 2015 - 11:41","group_id":"5954"}},{"node":{"title":"but...","content":"\n...having looked at the agenda, it does seem to be an extremely academic-medical event, where I may well just not be able to keep up, and it really needs somebody like @markomanka to be able to discuss opencare in that context?\n","comment_id":"20043","post_id":"5617","user_id":"3892","parent_comment_id":"20041","creation_date":"Friday, November 20, 2015 - 12:15","group_id":"5954"}},{"node":{"title":"but...","content":"\n...having looked at the agenda, it does seem to be an extremely academic-medical event, where I may well just not be able to keep up, and it really needs somebody like @markomanka to be able to discuss opencare in that context?\n","comment_id":"20043","post_id":"5617","user_id":"3892","parent_comment_id":"20041","creation_date":"Friday, November 20, 2015 - 12:15","group_id":"5954"}},{"node":{"title":"I'll be in town","content":"\nI'm going to be in Paris during COP21 anyway (wearing my OpenOil hat). So I could attend, though others in the community are better informed about the issues.\nI'll register anyway, but in the hope that somebody else will be able to join or replace me. [It'd also be a good chance for a face-to-face meeting with those of you I've not yet seen in person]\n\u00a0\n","comment_id":"20041","post_id":"5617","user_id":"3892","parent_comment_id":"0","creation_date":"Friday, November 20, 2015 - 11:47","group_id":"5954"}},{"node":{"title":"I'll be in town","content":"\nI'm going to be in Paris during COP21 anyway (wearing my OpenOil hat). So I could attend, though others in the community are better informed about the issues.\nI'll register anyway, but in the hope that somebody else will be able to join or replace me. [It'd also be a good chance for a face-to-face meeting with those of you I've not yet seen in person]\n\u00a0\n","comment_id":"20041","post_id":"5617","user_id":"3892","parent_comment_id":"0","creation_date":"Friday, November 20, 2015 - 11:47","group_id":"5954"}},{"node":{"title":"Open! ","content":"\nIt's really beautiful! Once data are open, people can do things with them. I am trying to involve in OpenCare some people I know in Italy who are committed to open data in health care. Of course, it's a legal minefield, but there you go .\n","comment_id":"19789","post_id":"5535","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, November 4, 2015 - 12:07","group_id":"5954"}},{"node":{"title":"Open! ","content":"\nIt's really beautiful! Once data are open, people can do things with them. I am trying to involve in OpenCare some people I know in Italy who are committed to open data in health care. Of course, it's a legal minefield, but there you go .\n","comment_id":"19789","post_id":"5535","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, November 4, 2015 - 12:07","group_id":"5954"}},{"node":{"title":"and from Gaza...","content":"\nhttp:\/\/www.independent.co.uk\/news\/world\/middle-east\/gaza-doctor-tarek-loubani-creates-3d-printed-stethoscopes-to-alleviate-medic...\n\"A doctor in the Gaza Strip who was faced with the fallout of an eight-year blockade in the territory has taken matters into his own hands and created a low-cost stethoscope with a 3D printer.\n...\nDoctors who have tested out the equipment have said it is as effective as stethoscopes by leading brands, despite being a fraction of the price.\nAudio tests have also shown that the Glia stethoscope was on par with the leading model on the market, the Littmann Cardiology III.\"\n\u00a0\n","comment_id":"19693","post_id":"5500","user_id":"3892","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 16:37","group_id":"4260"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"4260"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"366"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"4260"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"5366"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"366"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"5366"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"4260"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"366"}},{"node":{"title":"Care beyond the concept of \"clinic\" and hospital","content":"\nHi all,\ninteresting example, the self-organizing of the greeks.\nI would push the concept a bit further.\nSome years ago, I listened to a talk by John Thackara about how hospitals and clinics were becoming unsustainable for many reasons and he explained how we should move forward and think about a distributed type of care, re-design care without hospitals. The talk I'm sharing with you is the one he did at Mayo clinic and it's worth a watch:\nhttps:\/\/www.youtube.com\/watch?v=BRMYGBNIv_4\n(here's a infovis he shows in the video about Obama Care\u00a0http:\/\/kevinbrady.house.gov\/uploadedfiles\/obamacarechart.pdf )\nHe explains how\u00a0ninety five percent of healthcare happens outside hospital or the doctor\u2019s surgery - in the home, and in the community. Collaborative service networks are emerging- from child care, to dementia support - that empower people to work in equal and reciprocal relationship with professionals and without needing hospitals.\nHe also gives the example of Cuba and how they spend on 5% of what americans spend and reach the same level of health.\nThen shows how he applied design thinking in UK working on Alzheimer and dementia and starting from the point of view that health and wellbeing are properties of social-ecological-context and not a something you \"deliver\" like a pizza.\u00a0\nCommunities need to be nurtured and supported and it's by being \"in them\", not by doing things \"to them\" that change happens.\nI didn't have time to look for documents of his research, but im sure there's something more on the topic, we could collect.\nbest\nZoe\n\u00a0\n","comment_id":"19685","post_id":"5504","user_id":"3855","parent_comment_id":"0","creation_date":"Monday, October 26, 2015 - 12:56","group_id":"5366"}},{"node":{"title":"Love this","content":"\nIt's such a simple idea. Why isn't it everywhere?\n","comment_id":"19679","post_id":"5498","user_id":"45","parent_comment_id":"0","creation_date":"Saturday, October 24, 2015 - 12:32","group_id":"5954"}},{"node":{"title":"Love this","content":"\nIt's such a simple idea. Why isn't it everywhere?\n","comment_id":"19679","post_id":"5498","user_id":"45","parent_comment_id":"0","creation_date":"Saturday, October 24, 2015 - 12:32","group_id":"5954"}},{"node":{"title":"My guess is something c)-ish","content":"\nAlthough \"practical\" is perhaps not the right word. Maybe they were too practical...\nThe mode of operation for many organizations is far from entrepreneurial, and generally their structure and interaction\/decision modes reflect that. So there's a good chance that some were interested, but thought that interfacing would be a major pain. In some cases possibly true. In many though probably not. ER is probably more flexible in this respect than they believe possible for a respectable organization. :) Perhaps one should put in a slide addressing this at some point, or just highlight that we've worked successfully with the UN or some such.\nGenerally though, even if your presentation is received well - it usually won't look much like that (see my other comment). Absence of bitching is some of the highest praise you can expect (directly) in many such instances. They may very well have tagged you on their radar and will now follow you for progressive\/future evaluation (what I did was very similar). If you're still around in 5 years you must be doing something right. Unfortunately this is not necessarily a helpful (or innovative) mindset with respect to something like the refugee situation. In the health system I would actually expect this risk aversion to be particularly pronounced.\nWhat probably won't hurt is call up 1-2 places that made a goodish impression to you to see if one can find more common ground. If you like I can help with that.\n","comment_id":"19606","post_id":"5478","user_id":"6534","parent_comment_id":"19589","creation_date":"Monday, October 19, 2015 - 17:35","group_id":"5954"}},{"node":{"title":"My guess is something c)-ish","content":"\nAlthough \"practical\" is perhaps not the right word. Maybe they were too practical...\nThe mode of operation for many organizations is far from entrepreneurial, and generally their structure and interaction\/decision modes reflect that. So there's a good chance that some were interested, but thought that interfacing would be a major pain. In some cases possibly true. In many though probably not. ER is probably more flexible in this respect than they believe possible for a respectable organization. :) Perhaps one should put in a slide addressing this at some point, or just highlight that we've worked successfully with the UN or some such.\nGenerally though, even if your presentation is received well - it usually won't look much like that (see my other comment). Absence of bitching is some of the highest praise you can expect (directly) in many such instances. They may very well have tagged you on their radar and will now follow you for progressive\/future evaluation (what I did was very similar). If you're still around in 5 years you must be doing something right. Unfortunately this is not necessarily a helpful (or innovative) mindset with respect to something like the refugee situation. In the health system I would actually expect this risk aversion to be particularly pronounced.\nWhat probably won't hurt is call up 1-2 places that made a goodish impression to you to see if one can find more common ground. If you like I can help with that.\n","comment_id":"19606","post_id":"5478","user_id":"6534","parent_comment_id":"19589","creation_date":"Monday, October 19, 2015 - 17:35","group_id":"5954"}},{"node":{"title":"My guess is something c)-ish","content":"\nAlthough \"practical\" is perhaps not the right word. Maybe they were too practical...\nThe mode of operation for many organizations is far from entrepreneurial, and generally their structure and interaction\/decision modes reflect that. So there's a good chance that some were interested, but thought that interfacing would be a major pain. In some cases possibly true. In many though probably not. ER is probably more flexible in this respect than they believe possible for a respectable organization. :) Perhaps one should put in a slide addressing this at some point, or just highlight that we've worked successfully with the UN or some such.\nGenerally though, even if your presentation is received well - it usually won't look much like that (see my other comment). Absence of bitching is some of the highest praise you can expect (directly) in many such instances. They may very well have tagged you on their radar and will now follow you for progressive\/future evaluation (what I did was very similar). If you're still around in 5 years you must be doing something right. Unfortunately this is not necessarily a helpful (or innovative) mindset with respect to something like the refugee situation. In the health system I would actually expect this risk aversion to be particularly pronounced.\nWhat probably won't hurt is call up 1-2 places that made a goodish impression to you to see if one can find more common ground. If you like I can help with that.\n","comment_id":"19606","post_id":"5478","user_id":"6534","parent_comment_id":"19589","creation_date":"Monday, October 19, 2015 - 17:35","group_id":"5954"}},{"node":{"title":"This certainly resonates with me","content":"\nParticularly in the school context, where this can be found increasingly as you go to the lower levels. Perhaps part of this is because traditionally a career in education avoided many of the uncertainties you would have to face if you \"went out into the world\". So it often attracted these kinds of people (notably among others).\nOf course this does not apply across the board. Big groups are rarely as monolithic as they look. But in general I would go in with Ton's assessment. Of course @Alberto has a point too, particularly for sub-currents that may make up most of the edge. They may vehemently want to distance themselves from the mainstream. Generally though I believe operative the term is \"(semi) consensus democracy\". Basically, you only move when everyone agrees. Or when there's only a few shrill voices left, ignoring which won't cost you much authority (in case they were right after all). That way you avoid making punishable mistakes. There are certain circumstances (and levels of authority) where the system can switch into another dynamic though. E.g. reunification, Fukushima*, and now the refugee situation. Usually this is when there is consensus that there is no consensus - and waiting for it to arrive would very probably be very bad.\nI believe at such a time the normal channels become much less relevant and the effective deciding bodies smaller, and less restricted by convention. When Merkel did a 1 h talkshow this was the signal (in case you had missed it) that we are in \"Neuland\" (uncharted territory) once again.\n*This is not strictly true, but that is a long story.\n","comment_id":"19605","post_id":"5478","user_id":"6534","parent_comment_id":"19588","creation_date":"Monday, October 19, 2015 - 17:15","group_id":"5954"}},{"node":{"title":"This certainly resonates with me","content":"\nParticularly in the school context, where this can be found increasingly as you go to the lower levels. Perhaps part of this is because traditionally a career in education avoided many of the uncertainties you would have to face if you \"went out into the world\". So it often attracted these kinds of people (notably among others).\nOf course this does not apply across the board. Big groups are rarely as monolithic as they look. But in general I would go in with Ton's assessment. Of course @Alberto has a point too, particularly for sub-currents that may make up most of the edge. They may vehemently want to distance themselves from the mainstream. Generally though I believe operative the term is \"(semi) consensus democracy\". Basically, you only move when everyone agrees. Or when there's only a few shrill voices left, ignoring which won't cost you much authority (in case they were right after all). That way you avoid making punishable mistakes. There are certain circumstances (and levels of authority) where the system can switch into another dynamic though. E.g. reunification, Fukushima*, and now the refugee situation. Usually this is when there is consensus that there is no consensus - and waiting for it to arrive would very probably be very bad.\nI believe at such a time the normal channels become much less relevant and the effective deciding bodies smaller, and less restricted by convention. When Merkel did a 1 h talkshow this was the signal (in case you had missed it) that we are in \"Neuland\" (uncharted territory) once again.\n*This is not strictly true, but that is a long story.\n","comment_id":"19605","post_id":"5478","user_id":"6534","parent_comment_id":"19588","creation_date":"Monday, October 19, 2015 - 17:15","group_id":"5954"}},{"node":{"title":"This certainly resonates with me","content":"\nParticularly in the school context, where this can be found increasingly as you go to the lower levels. Perhaps part of this is because traditionally a career in education avoided many of the uncertainties you would have to face if you \"went out into the world\". So it often attracted these kinds of people (notably among others).\nOf course this does not apply across the board. Big groups are rarely as monolithic as they look. But in general I would go in with Ton's assessment. Of course @Alberto has a point too, particularly for sub-currents that may make up most of the edge. They may vehemently want to distance themselves from the mainstream. Generally though I believe operative the term is \"(semi) consensus democracy\". Basically, you only move when everyone agrees. Or when there's only a few shrill voices left, ignoring which won't cost you much authority (in case they were right after all). That way you avoid making punishable mistakes. There are certain circumstances (and levels of authority) where the system can switch into another dynamic though. E.g. reunification, Fukushima*, and now the refugee situation. Usually this is when there is consensus that there is no consensus - and waiting for it to arrive would very probably be very bad.\nI believe at such a time the normal channels become much less relevant and the effective deciding bodies smaller, and less restricted by convention. When Merkel did a 1 h talkshow this was the signal (in case you had missed it) that we are in \"Neuland\" (uncharted territory) once again.\n*This is not strictly true, but that is a long story.\n","comment_id":"19605","post_id":"5478","user_id":"6534","parent_comment_id":"19588","creation_date":"Monday, October 19, 2015 - 17:15","group_id":"5954"}},{"node":{"title":"!","content":"\n@ton\n@ton, I had no idea this was an issue. It's counterintuitive: Germany clearly works somewhat, if that was their standard reaction would it not be completely paralysed?\u00a0\n","comment_id":"19593","post_id":"5478","user_id":"34","parent_comment_id":"19588","creation_date":"Saturday, October 17, 2015 - 19:22","group_id":"5954"}},{"node":{"title":"!","content":"\n@ton\n@ton, I had no idea this was an issue. It's counterintuitive: Germany clearly works somewhat, if that was their standard reaction would it not be completely paralysed?\u00a0\n","comment_id":"19593","post_id":"5478","user_id":"34","parent_comment_id":"19588","creation_date":"Saturday, October 17, 2015 - 19:22","group_id":"5954"}},{"node":{"title":"!","content":"\n@ton\n@ton, I had no idea this was an issue. It's counterintuitive: Germany clearly works somewhat, if that was their standard reaction would it not be completely paralysed?\u00a0\n","comment_id":"19593","post_id":"5478","user_id":"34","parent_comment_id":"19588","creation_date":"Saturday, October 17, 2015 - 19:22","group_id":"5954"}},{"node":{"title":"Difficult to gauge","content":"\nThe workshops for the different presenters ran in parallel so I couldn't go to any of the other ones and get a sense of interest\/participation. My impression is that it was very much a \"give me some tools I can go to the office and use tomorrow\" kind of crowd.\u00a0\nI can say that no one from any of the organisations with whom I can see space for collaboration participated in my workshop. Not sure how to interpret that. Some options:\na) the contents where too new, abstract or badly communicated.\nb) my presentation did not give the impression I am credible enough to engage with\nc) the contents of my talk were not practical enough so they didn't think they could get anything actionable from it\nd) something else\n","comment_id":"19589","post_id":"5478","user_id":"45","parent_comment_id":"19588","creation_date":"Saturday, October 17, 2015 - 18:17","group_id":"5954"}},{"node":{"title":"Difficult to gauge","content":"\nThe workshops for the different presenters ran in parallel so I couldn't go to any of the other ones and get a sense of interest\/participation. My impression is that it was very much a \"give me some tools I can go to the office and use tomorrow\" kind of crowd.\u00a0\nI can say that no one from any of the organisations with whom I can see space for collaboration participated in my workshop. Not sure how to interpret that. Some options:\na) the contents where too new, abstract or badly communicated.\nb) my presentation did not give the impression I am credible enough to engage with\nc) the contents of my talk were not practical enough so they didn't think they could get anything actionable from it\nd) something else\n","comment_id":"19589","post_id":"5478","user_id":"45","parent_comment_id":"19588","creation_date":"Saturday, October 17, 2015 - 18:17","group_id":"5954"}},{"node":{"title":"Difficult to gauge","content":"\nThe workshops for the different presenters ran in parallel so I couldn't go to any of the other ones and get a sense of interest\/participation. My impression is that it was very much a \"give me some tools I can go to the office and use tomorrow\" kind of crowd.\u00a0\nI can say that no one from any of the organisations with whom I can see space for collaboration participated in my workshop. Not sure how to interpret that. Some options:\na) the contents where too new, abstract or badly communicated.\nb) my presentation did not give the impression I am credible enough to engage with\nc) the contents of my talk were not practical enough so they didn't think they could get anything actionable from it\nd) something else\n","comment_id":"19589","post_id":"5478","user_id":"45","parent_comment_id":"19588","creation_date":"Saturday, October 17, 2015 - 18:17","group_id":"5954"}},{"node":{"title":"Curious to how open to experiment you found the audience","content":"\nI found doing presentations \/ workshops on creating change in policy areas like education and administrative transparency in Germany often resulted in \"yes, good ideas, but for that we would need to change the constitution, so it's not going to happen\", even when talking about small scale probes\/experiments (like what a teacher can do in her own classroom). I interpreted that as a fig-leaf for inaction. Curious to hear if you encountered any of that. Or, hopefully, it was a crowd more vested in doing what is already possible now while eyeing the more fundamental changes to come.\n","comment_id":"19588","post_id":"5478","user_id":"1071","parent_comment_id":"0","creation_date":"Saturday, October 17, 2015 - 18:03","group_id":"5954"}},{"node":{"title":"Curious to how open to experiment you found the audience","content":"\nI found doing presentations \/ workshops on creating change in policy areas like education and administrative transparency in Germany often resulted in \"yes, good ideas, but for that we would need to change the constitution, so it's not going to happen\", even when talking about small scale probes\/experiments (like what a teacher can do in her own classroom). I interpreted that as a fig-leaf for inaction. Curious to hear if you encountered any of that. Or, hopefully, it was a crowd more vested in doing what is already possible now while eyeing the more fundamental changes to come.\n","comment_id":"19588","post_id":"5478","user_id":"1071","parent_comment_id":"0","creation_date":"Saturday, October 17, 2015 - 18:03","group_id":"5954"}},{"node":{"title":"Curious to how open to experiment you found the audience","content":"\nI found doing presentations \/ workshops on creating change in policy areas like education and administrative transparency in Germany often resulted in \"yes, good ideas, but for that we would need to change the constitution, so it's not going to happen\", even when talking about small scale probes\/experiments (like what a teacher can do in her own classroom). I interpreted that as a fig-leaf for inaction. Curious to hear if you encountered any of that. Or, hopefully, it was a crowd more vested in doing what is already possible now while eyeing the more fundamental changes to come.\n","comment_id":"19588","post_id":"5478","user_id":"1071","parent_comment_id":"0","creation_date":"Saturday, October 17, 2015 - 18:03","group_id":"5954"}},{"node":{"title":"Personally, the politics","content":"\nPersonally, the politics label would scare me most. But then I'm from Germany, so in your shoes I'd have been a bit apprehensive to say the least. I'm sure you did a good job though (which is something you won't be able to read off this crowd easily).\nThere is a nice joke on this, but it is of course not PC and doesn't work as well written down... Next time we meet perhaps. :)\n","comment_id":"19579","post_id":"5478","user_id":"6534","parent_comment_id":"0","creation_date":"Saturday, October 17, 2015 - 14:50","group_id":"5954"}},{"node":{"title":"Personally, the politics","content":"\nPersonally, the politics label would scare me most. But then I'm from Germany, so in your shoes I'd have been a bit apprehensive to say the least. I'm sure you did a good job though (which is something you won't be able to read off this crowd easily).\nThere is a nice joke on this, but it is of course not PC and doesn't work as well written down... Next time we meet perhaps. :)\n","comment_id":"19579","post_id":"5478","user_id":"6534","parent_comment_id":"0","creation_date":"Saturday, October 17, 2015 - 14:50","group_id":"5954"}},{"node":{"title":"Personally, the politics","content":"\nPersonally, the politics label would scare me most. But then I'm from Germany, so in your shoes I'd have been a bit apprehensive to say the least. I'm sure you did a good job though (which is something you won't be able to read off this crowd easily).\nThere is a nice joke on this, but it is of course not PC and doesn't work as well written down... Next time we meet perhaps. :)\n","comment_id":"19579","post_id":"5478","user_id":"6534","parent_comment_id":"0","creation_date":"Saturday, October 17, 2015 - 14:50","group_id":"5954"}},{"node":{"title":"I hope (and expect) all went","content":"\nI hope (and expect) all went well! :)\nIf you have some time @Nadia it would be cool to know what kind of crowd you ran into there. Also I heard there is a twitter account up now? Would you like to get a bunch of links you can retweet? E.g. things like this: http:\/\/www.nature.com\/news\/consider-all-the-evidence-on-alternative-therapies-1.18547 this should tie in well with our thought on the placebo thang.\n","comment_id":"19569","post_id":"5422","user_id":"6534","parent_comment_id":"0","creation_date":"Friday, October 16, 2015 - 20:54","group_id":"5954"}},{"node":{"title":"I hope (and expect) all went","content":"\nI hope (and expect) all went well! :)\nIf you have some time @Nadia it would be cool to know what kind of crowd you ran into there. Also I heard there is a twitter account up now? Would you like to get a bunch of links you can retweet? E.g. things like this: http:\/\/www.nature.com\/news\/consider-all-the-evidence-on-alternative-therapies-1.18547 this should tie in well with our thought on the placebo thang.\n","comment_id":"19569","post_id":"5422","user_id":"6534","parent_comment_id":"0","creation_date":"Friday, October 16, 2015 - 20:54","group_id":"5954"}},{"node":{"title":"Outline of presentation online. Input\/data\/images welcome!","content":"\nHello all,\nThe outline\/narrative arch of the keynote presentation is now online. \u00a0I need your help: how\u00a0to get certain points across simply and convincingly?\nhttps:\/\/docs.google.com\/presentation\/d\/1-hXaTOV6-PI1OKi4WLFIsAO8zmxCNyM2A6YuzgG1Rlc\/edit?usp=sharing\nPlease go in and add images & help with content by adding information to the speaker notes.\n\u00a0\n","comment_id":"19481","post_id":"5422","user_id":"45","parent_comment_id":"0","creation_date":"Monday, October 12, 2015 - 12:19","group_id":"5954"}},{"node":{"title":"Outline of presentation online. Input\/data\/images welcome!","content":"\nHello all,\nThe outline\/narrative arch of the keynote presentation is now online. \u00a0I need your help: how\u00a0to get certain points across simply and convincingly?\nhttps:\/\/docs.google.com\/presentation\/d\/1-hXaTOV6-PI1OKi4WLFIsAO8zmxCNyM2A6YuzgG1Rlc\/edit?usp=sharing\nPlease go in and add images & help with content by adding information to the speaker notes.\n\u00a0\n","comment_id":"19481","post_id":"5422","user_id":"45","parent_comment_id":"0","creation_date":"Monday, October 12, 2015 - 12:19","group_id":"5954"}},{"node":{"title":"Dementia is a huge public health issue and it's a key example to","content":"\nframe the potential impact of OpenCare approach and be used as a practical example because a lot of people have been in touch with the issue.\nIt's one of the field where bottom-up solutions can be developed and co-designed by a wider audience, involving families and specialists.\nI'm not sure if it can help but I've just read an article about a recent Dementia care conference, here's some interesting bits:\nPeter Rabins \u2014 director of the division of geriatric psychiatry, school of medicine, at Johns Hopkins University - says that in US, it\u2019s projected that about 16 million people will have Alzheimer disease in 2050. Today, every 67 seconds, a dementia case is found. It is estimated by mid-century that that will happen every 33 seconds because of the aging population.\nBetween 60 percent and 90 percent of people with dementia also have behavioral or psychiatric problems that come from the disease. And about 98 percent of people \u201cwant to live at home with dementia,\u201d Rabins said, \u201cNot everybody can. \"\nThe goal in Alzheimer\u2019s disease treatment, he said, is rehabilitation. \u201cWhat do rehabilitation specialists do?,\u201d Rabins asked. \u201cThey figure out what can the person no longer do, and then we give them an aid. If someone needs a cane because they\u2019ve had a stroke and they are weak on one side, we give them a cane. If they need a walker to be steady, we give them a walker. \u201cBut equally important, they also figure out what can the person still do. And our goal here is to maximize the person\u2019s functioning independence.\u201d\n----------------\nMore than the distinction between commercial \/ non-commercial , i'd use the distinction between profit\/not profit . \u00a0Open doesn't mean free.\nI think that public health is like public transportation, if the focus is profit, it doesn't work properly.\u00a0\nIn the world we'll have 75 millions with Alzheimer disease in 2030 and 135 millions in \u00a02050\n","comment_id":"19375","post_id":"5422","user_id":"3855","parent_comment_id":"0","creation_date":"Tuesday, September 22, 2015 - 00:27","group_id":"5954"}},{"node":{"title":"Dementia is a huge public health issue and it's a key example to","content":"\nframe the potential impact of OpenCare approach and be used as a practical example because a lot of people have been in touch with the issue.\nIt's one of the field where bottom-up solutions can be developed and co-designed by a wider audience, involving families and specialists.\nI'm not sure if it can help but I've just read an article about a recent Dementia care conference, here's some interesting bits:\nPeter Rabins \u2014 director of the division of geriatric psychiatry, school of medicine, at Johns Hopkins University - says that in US, it\u2019s projected that about 16 million people will have Alzheimer disease in 2050. Today, every 67 seconds, a dementia case is found. It is estimated by mid-century that that will happen every 33 seconds because of the aging population.\nBetween 60 percent and 90 percent of people with dementia also have behavioral or psychiatric problems that come from the disease. And about 98 percent of people \u201cwant to live at home with dementia,\u201d Rabins said, \u201cNot everybody can. \"\nThe goal in Alzheimer\u2019s disease treatment, he said, is rehabilitation. \u201cWhat do rehabilitation specialists do?,\u201d Rabins asked. \u201cThey figure out what can the person no longer do, and then we give them an aid. If someone needs a cane because they\u2019ve had a stroke and they are weak on one side, we give them a cane. If they need a walker to be steady, we give them a walker. \u201cBut equally important, they also figure out what can the person still do. And our goal here is to maximize the person\u2019s functioning independence.\u201d\n----------------\nMore than the distinction between commercial \/ non-commercial , i'd use the distinction between profit\/not profit . \u00a0Open doesn't mean free.\nI think that public health is like public transportation, if the focus is profit, it doesn't work properly.\u00a0\nIn the world we'll have 75 millions with Alzheimer disease in 2030 and 135 millions in \u00a02050\n","comment_id":"19375","post_id":"5422","user_id":"3855","parent_comment_id":"0","creation_date":"Tuesday, September 22, 2015 - 00:27","group_id":"5954"}},{"node":{"title":"Here is a bit of a primer for people who aren't sure what this","content":"\nis about:\nhttps:\/\/edgeryders.eu\/sites\/default\/files\/688670-OPENCARE-Evaluation%20form.pdf\nDoes someone else have a better wrap up for people who are new to this but want to help?\n","comment_id":"19374","post_id":"5422","user_id":"6534","parent_comment_id":"19371","creation_date":"Sunday, September 20, 2015 - 21:55","group_id":"5954"}},{"node":{"title":"Here is a bit of a primer for people who aren't sure what this","content":"\nis about:\nhttps:\/\/edgeryders.eu\/sites\/default\/files\/688670-OPENCARE-Evaluation%20form.pdf\nDoes someone else have a better wrap up for people who are new to this but want to help?\n","comment_id":"19374","post_id":"5422","user_id":"6534","parent_comment_id":"19371","creation_date":"Sunday, September 20, 2015 - 21:55","group_id":"5954"}},{"node":{"title":"Perhaps.","content":"\nI would like to leave the event with \n1. a SWOT analysis \n2. understanding of how to position the OpenCare project in commercial and non-commercial contexts\n3. preliminary handshakes with a number of potential clients\/funders\u00a0\nAny suggestions for a good strategy for keynote and workshop? Here's where I am working on the slides.\n\u00a0\n","comment_id":"19372","post_id":"5422","user_id":"45","parent_comment_id":"19369","creation_date":"Sunday, September 20, 2015 - 09:25","group_id":"5954"}},{"node":{"title":"Perhaps.","content":"\nI would like to leave the event with \n1. a SWOT analysis \n2. understanding of how to position the OpenCare project in commercial and non-commercial contexts\n3. preliminary handshakes with a number of potential clients\/funders\u00a0\nAny suggestions for a good strategy for keynote and workshop? Here's where I am working on the slides.\n\u00a0\n","comment_id":"19372","post_id":"5422","user_id":"45","parent_comment_id":"19369","creation_date":"Sunday, September 20, 2015 - 09:25","group_id":"5954"}},{"node":{"title":"Couple of nudges, waiting for more info","content":"\nWith regard to general care and rehab I reached out an nudged a couple of people. There is one promising mid-career health professional who will likely be interested - and this would probably coincide well with an upcoming career move too.\nHowever I believe language may be a bit of an issue, as I believe she speaks only German on a proficient enough level (she can probably read English fine, and perhaps also has the listening comprehension). If we can \"buddy her up\" with someone appropriate I'd think it would work out.\n\u00a0\n","comment_id":"19371","post_id":"5422","user_id":"6534","parent_comment_id":"0","creation_date":"Sunday, September 20, 2015 - 00:28","group_id":"5954"}},{"node":{"title":"Couple of nudges, waiting for more info","content":"\nWith regard to general care and rehab I reached out an nudged a couple of people. There is one promising mid-career health professional who will likely be interested - and this would probably coincide well with an upcoming career move too.\nHowever I believe language may be a bit of an issue, as I believe she speaks only German on a proficient enough level (she can probably read English fine, and perhaps also has the listening comprehension). If we can \"buddy her up\" with someone appropriate I'd think it would work out.\n\u00a0\n","comment_id":"19371","post_id":"5422","user_id":"6534","parent_comment_id":"0","creation_date":"Sunday, September 20, 2015 - 00:28","group_id":"5954"}},{"node":{"title":"I am not sure I understand right","content":"\nYou are looking for high level tools that help foster an open conversation on the subject of care specifically, or rather more generally policy making?\nThe way I read the above it sounds like the talk will be more general, but the results of the workshop should come out with a specific focus. Perhaps a bit SWOT-analysis like?\n","comment_id":"19369","post_id":"5422","user_id":"6534","parent_comment_id":"0","creation_date":"Thursday, September 17, 2015 - 20:45","group_id":"5954"}},{"node":{"title":"I am not sure I understand right","content":"\nYou are looking for high level tools that help foster an open conversation on the subject of care specifically, or rather more generally policy making?\nThe way I read the above it sounds like the talk will be more general, but the results of the workshop should come out with a specific focus. Perhaps a bit SWOT-analysis like?\n","comment_id":"19369","post_id":"5422","user_id":"6534","parent_comment_id":"0","creation_date":"Thursday, September 17, 2015 - 20:45","group_id":"5954"}},{"node":{"title":"Nice to see the event coming","content":"\nNice to see the event coming along @Nadia and @Caroline-paulick-thiel\n\nI've been working (my ass of) on a few things the last months that you might find interesting\n- MethodKit for Cities (soon done)\n- MethodKit for Workshop Planning (CC -> Working docs\u00a0or the cards in beta to print & test)\n- MethodKit for Public Health (already released)\n- MethodKit for Informal Settlements (upcoming CC kit)\n\nThe new site releasing on wednesday is there -> http:\/\/methodkit.wpengine.com\nBtw, thanks for supporting me on the Toolbox\/How thing today Nadia.\n","comment_id":"19367","post_id":"5422","user_id":"380","parent_comment_id":"0","creation_date":"Thursday, September 17, 2015 - 17:56","group_id":"5954"}},{"node":{"title":"Nice to see the event coming","content":"\nNice to see the event coming along @Nadia and @Caroline-paulick-thiel\n\nI've been working (my ass of) on a few things the last months that you might find interesting\n- MethodKit for Cities (soon done)\n- MethodKit for Workshop Planning (CC -> Working docs\u00a0or the cards in beta to print & test)\n- MethodKit for Public Health (already released)\n- MethodKit for Informal Settlements (upcoming CC kit)\n\nThe new site releasing on wednesday is there -> http:\/\/methodkit.wpengine.com\nBtw, thanks for supporting me on the Toolbox\/How thing today Nadia.\n","comment_id":"19367","post_id":"5422","user_id":"380","parent_comment_id":"0","creation_date":"Thursday, September 17, 2015 - 17:56","group_id":"5954"}},{"node":{"title":"Killer move","content":"\nI think it is a really good idea. However, we need the \"meat\" of the talk. The OpenCare proposal helps, but we'd probably need to collect some cases of community driven care services. Also ping @Luciascopelliti.\n","comment_id":"19364","post_id":"5417","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, September 16, 2015 - 15:50","group_id":"5954"}},{"node":{"title":"Killer move","content":"\nI think it is a really good idea. However, we need the \"meat\" of the talk. The OpenCare proposal helps, but we'd probably need to collect some cases of community driven care services. Also ping @Luciascopelliti.\n","comment_id":"19364","post_id":"5417","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, September 16, 2015 - 15:50","group_id":"5954"}},{"node":{"title":"I would like to support ","content":"\nI've given a bunch of presentations and like to critique and fix them, I know a bunch of people in the scene, and I will very likely be able to arrange for private accommodation in Hamburg for a couple of people.\nMost of my personal interests are currently not really in a state that lends itself well to a presentation, but if I can use this as an opportunity to finally go to C3 and help someone else - even better.\nApart from that, I was playing with the idea of getting a couple of not-usual-suspects to join as well. Specifically I was thinking of a couple of techie women from the UAE and perhaps also someone from the cultural\/gender field there. I think this could be an enriching perspective and make for interesting discussions. What do you think?\nI already have an idea how to dig up a couple of potential attendees\/speakers.\n","comment_id":"19363","post_id":"5417","user_id":"6534","parent_comment_id":"0","creation_date":"Wednesday, September 16, 2015 - 13:19","group_id":"5954"}},{"node":{"title":"I would like to support ","content":"\nI've given a bunch of presentations and like to critique and fix them, I know a bunch of people in the scene, and I will very likely be able to arrange for private accommodation in Hamburg for a couple of people.\nMost of my personal interests are currently not really in a state that lends itself well to a presentation, but if I can use this as an opportunity to finally go to C3 and help someone else - even better.\nApart from that, I was playing with the idea of getting a couple of not-usual-suspects to join as well. Specifically I was thinking of a couple of techie women from the UAE and perhaps also someone from the cultural\/gender field there. I think this could be an enriching perspective and make for interesting discussions. What do you think?\nI already have an idea how to dig up a couple of potential attendees\/speakers.\n","comment_id":"19363","post_id":"5417","user_id":"6534","parent_comment_id":"0","creation_date":"Wednesday, September 16, 2015 - 13:19","group_id":"5954"}},{"node":{"title":"For the camp this summer but it fell through","content":"\nJaromil wanted Amelia and I to do something together but I thought it was a bit vague to be honest. Plus the dates conflicted with my stay in Athens...\n","comment_id":"19355","post_id":"5417","user_id":"45","parent_comment_id":"19354","creation_date":"Tuesday, September 15, 2015 - 01:19","group_id":"5954"}},{"node":{"title":"For the camp this summer but it fell through","content":"\nJaromil wanted Amelia and I to do something together but I thought it was a bit vague to be honest. Plus the dates conflicted with my stay in Athens...\n","comment_id":"19355","post_id":"5417","user_id":"45","parent_comment_id":"19354","creation_date":"Tuesday, September 15, 2015 - 01:19","group_id":"5954"}},{"node":{"title":"I think I persuaded","content":"\n@Costantino\u00a0and @zoescope\u00a0to go. Maybe we could cook up an OpenCare-related talk with @markomanka?\u00a0\nBut wait\u2013 were you not supposed to do a talk with Jaromil?\u00a0\n","comment_id":"19354","post_id":"5417","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, September 15, 2015 - 01:14","group_id":"5954"}},{"node":{"title":"I think I persuaded","content":"\n@Costantino\u00a0and @zoescope\u00a0to go. Maybe we could cook up an OpenCare-related talk with @markomanka?\u00a0\nBut wait\u2013 were you not supposed to do a talk with Jaromil?\u00a0\n","comment_id":"19354","post_id":"5417","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, September 15, 2015 - 01:14","group_id":"5954"}},{"node":{"title":"I know, right @Alberto? I","content":"\nI know, right @Alberto? I used to live in Poland and this was a real issue there. Women had to travel to Germany every time to get an abortion. I was so surprised and it seemed to be such a \u00a0hypocrisy considering Poland is in EU and so progressive otherwise.\nLike people would sin in every possible way - getting drunk, lying, cheating,etc and then go pray on Sundays in the church and consider themselves righteous Christians. So how come abortion is not legal I would wonder?\nBut it doesn't surprise me any more, religious hypocrisy is the same everywhere - also in Armenia\/Georgia(\"cradles of Christianity\") and Morocco(a 100% Muslim country).\n","comment_id":"18374","post_id":"4701","user_id":"6028","parent_comment_id":"18348","creation_date":"Friday, June 26, 2015 - 14:49","group_id":"5954"}},{"node":{"title":"I know, right @Alberto? I","content":"\nI know, right @Alberto? I used to live in Poland and this was a real issue there. Women had to travel to Germany every time to get an abortion. I was so surprised and it seemed to be such a \u00a0hypocrisy considering Poland is in EU and so progressive otherwise.\nLike people would sin in every possible way - getting drunk, lying, cheating,etc and then go pray on Sundays in the church and consider themselves righteous Christians. So how come abortion is not legal I would wonder?\nBut it doesn't surprise me any more, religious hypocrisy is the same everywhere - also in Armenia\/Georgia(\"cradles of Christianity\") and Morocco(a 100% Muslim country).\n","comment_id":"18374","post_id":"4701","user_id":"6028","parent_comment_id":"18348","creation_date":"Friday, June 26, 2015 - 14:49","group_id":"5954"}},{"node":{"title":"Thanks @trythis I relax by","content":"\nThanks @trythis I relax by checking my friends' news feed on fb...i guess i follow the right people ;-)\n","comment_id":"18373","post_id":"4701","user_id":"6028","parent_comment_id":"18345","creation_date":"Friday, June 26, 2015 - 14:40","group_id":"5954"}},{"node":{"title":"Thanks @trythis I relax by","content":"\nThanks @trythis I relax by checking my friends' news feed on fb...i guess i follow the right people ;-)\n","comment_id":"18373","post_id":"4701","user_id":"6028","parent_comment_id":"18345","creation_date":"Friday, June 26, 2015 - 14:40","group_id":"5954"}},{"node":{"title":"I. Love. This!","content":"\nWhaaat? This is genius...\u00a0\n","comment_id":"18348","post_id":"4701","user_id":"34","parent_comment_id":"18344","creation_date":"Thursday, June 25, 2015 - 14:58","group_id":"5954"}},{"node":{"title":"I. Love. This!","content":"\nWhaaat? This is genius...\u00a0\n","comment_id":"18348","post_id":"4701","user_id":"34","parent_comment_id":"18344","creation_date":"Thursday, June 25, 2015 - 14:58","group_id":"5954"}},{"node":{"title":"I think this is very relevant!","content":"\nIt is an extremely good example of the moral and practical challenges faced. And it addresses an issue that in not so far on the male side of the spectrum...\nThanks for that - how did you find it?\n","comment_id":"18345","post_id":"4701","user_id":"6534","parent_comment_id":"18344","creation_date":"Thursday, June 25, 2015 - 13:24","group_id":"5954"}},{"node":{"title":"I think this is very relevant!","content":"\nIt is an extremely good example of the moral and practical challenges faced. And it addresses an issue that in not so far on the male side of the spectrum...\nThanks for that - how did you find it?\n","comment_id":"18345","post_id":"4701","user_id":"6534","parent_comment_id":"18344","creation_date":"Thursday, June 25, 2015 - 13:24","group_id":"5954"}},{"node":{"title":"Here is how drones will be","content":"\nHere is how drones will be useful in Poland though I know it's not relevant. Sorry not sorry :P\n","comment_id":"18344","post_id":"4701","user_id":"6028","parent_comment_id":"0","creation_date":"Thursday, June 25, 2015 - 12:46","group_id":"5954"}},{"node":{"title":"Here is how drones will be","content":"\nHere is how drones will be useful in Poland though I know it's not relevant. Sorry not sorry :P\n","comment_id":"18344","post_id":"4701","user_id":"6028","parent_comment_id":"0","creation_date":"Thursday, June 25, 2015 - 12:46","group_id":"5954"}},{"node":{"title":"We had the same challenge","content":"\nSome inspirations \/ remarks from our experience:\nIMHO, the bias introduced by transforming verbatim speech to third person is much bigger than the one by asking questions during an interview. The first influences content, the second only topic (if done right). We had this same challenge in the Future Makers Nepal project. Then @Dipti Sherchan pioneered a solution that consists of first-person speech for the answers of the interview, and first-person remarks and introduction by the interviewer, all combined into a nice narrative format. See the interviews in the Future Makers Nepal space done by Dipti and Annu from our team so far. Could fit for a book format as well.\n","comment_id":"18042","post_id":"4672","user_id":"36","parent_comment_id":"18010","creation_date":"Saturday, June 13, 2015 - 08:18","group_id":"5954"}},{"node":{"title":"We had the same challenge","content":"\nSome inspirations \/ remarks from our experience:\nIMHO, the bias introduced by transforming verbatim speech to third person is much bigger than the one by asking questions during an interview. The first influences content, the second only topic (if done right). We had this same challenge in the Future Makers Nepal project. Then @Dipti Sherchan pioneered a solution that consists of first-person speech for the answers of the interview, and first-person remarks and introduction by the interviewer, all combined into a nice narrative format. See the interviews in the Future Makers Nepal space done by Dipti and Annu from our team so far. Could fit for a book format as well.\n","comment_id":"18042","post_id":"4672","user_id":"36","parent_comment_id":"18010","creation_date":"Saturday, June 13, 2015 - 08:18","group_id":"5954"}},{"node":{"title":"Makes total sense","content":"\nAlso, we need a high quality portrait\/photo of each person\/people and surroundings for each case study.\u00a0\n","comment_id":"18019","post_id":"4672","user_id":"45","parent_comment_id":"18010","creation_date":"Friday, June 12, 2015 - 10:07","group_id":"5954"}},{"node":{"title":"Makes total sense","content":"\nAlso, we need a high quality portrait\/photo of each person\/people and surroundings for each case study.\u00a0\n","comment_id":"18019","post_id":"4672","user_id":"45","parent_comment_id":"18010","creation_date":"Friday, June 12, 2015 - 10:07","group_id":"5954"}},{"node":{"title":"first or third person?","content":"\nThis is important when we write the case studies down. The interview framework is there to be coherent throughout all the case \u00a0studies, but how to then write it down is important too. Not only for readability, but also for analysis.\nAnd I had some doubts what would be best: all in 1st or all in 3rd person. 1st person is interesting because you get sucked into the narrative of the person self, you experience it from their perspective. But then I thought: that person wasn't the only one in the room. That person was asked questions by another person, and that other person has their on bias which they bring into the room. The same accounts for the person taking notes. And even though the end product will be the result of collaboration between the interviewer, subject and notetaker, for the reader this may not be clear. It may skew our results as well.\nSo what I propose, and let me know what you think, is that we do a combo of both. Almost journalism style. Where the larger analytical and introduction parts are being narrated by the interviewer, and larger other interesting chunks are first person narrated in quotations.\u00a0\nAs for the final analysis (book), we should introduce all the interviewers\/engagement managers and other people involved in the cocreation of the case studies as well. Show bias, to avoid bias.\n","comment_id":"18010","post_id":"4672","user_id":"5520","parent_comment_id":"0","creation_date":"Thursday, June 11, 2015 - 23:17","group_id":"5954"}},{"node":{"title":"first or third person?","content":"\nThis is important when we write the case studies down. The interview framework is there to be coherent throughout all the case \u00a0studies, but how to then write it down is important too. Not only for readability, but also for analysis.\nAnd I had some doubts what would be best: all in 1st or all in 3rd person. 1st person is interesting because you get sucked into the narrative of the person self, you experience it from their perspective. But then I thought: that person wasn't the only one in the room. That person was asked questions by another person, and that other person has their on bias which they bring into the room. The same accounts for the person taking notes. And even though the end product will be the result of collaboration between the interviewer, subject and notetaker, for the reader this may not be clear. It may skew our results as well.\nSo what I propose, and let me know what you think, is that we do a combo of both. Almost journalism style. Where the larger analytical and introduction parts are being narrated by the interviewer, and larger other interesting chunks are first person narrated in quotations.\u00a0\nAs for the final analysis (book), we should introduce all the interviewers\/engagement managers and other people involved in the cocreation of the case studies as well. Show bias, to avoid bias.\n","comment_id":"18010","post_id":"4672","user_id":"5520","parent_comment_id":"0","creation_date":"Thursday, June 11, 2015 - 23:17","group_id":"5954"}},{"node":{"title":"Slowly, slowly","content":"\nEasy does it :)\nI think the \"special edition community call\" will happen but not as next step. I'll try to assemble some info into a really short pitch - perhaps multiple pitches.\nMost likely what I'll do is something like a presentation of 10-15 slides with narration of project concepts, and some more explanation in the appendix to get people who are new to the topic onto the same page.\nIf I get the impression we have a fighting chance to reach \"critical mass\" for some sort of project (with various ways and degrees of participation), I'll try to frame it in a more orthodox way. I'll try to shoot for something that can start small, but demonstrates potential impact, and a path to ramp it up.\nRegarding \"gender \/ other peoples perception\":\nI'll take one step back.\nIn my opinion drones are at the point where many of the non-innovative, technologically skeptical, and clueless parts of society have decided that drones will play a significant role in the future*. I am not sure how large this part will actually be. I think it is a pretty complex problem, but that is a story for later.\nNow of course some actors smell a bigger market or faster ROI than others. These are likely to push for funding and policy changes (FAA & EASA), which may end up making alternative routes of development difficult or impossible. As drones have been largely developed in a military environment, this defines the perspective of many of these early players (to some degree) at least.\nHowever: We're about to introduce drones into many of our everyday lives - not just over the heads of an enemy army. We need to bring diverse public interests to the table. And we need to involve people into design decisions somehow. The reference to gender was because my impression has been that the female views don't seem to have a lot of traction in this. Nadia gave a good exception - but it has very few views. Here I am not talking so much about a lack of female engineers working on drones (quite a few do). I am more thinking about the global (especially: informal) economic activity that represents a large fraction of economic activity in developing nations. Also, I am thinking of female equality \/ empowerment \/ safety aspects which could be addressed more effectively if their voices were represented throughout the process.\n*Outside of the military.\nThey will definitely play a role on the battlefield - probably an important one. To be honest this is a field I am interested as well, because technology can often make military conflict significantly more \"humane\" or less \"humane\". And it often indirectly influences general power structures significantly over time. I think it is worthwhile to look at this - but I also think 99% of the time, 99% of the drones should be busy doing something less ambiguously beneficial. That is what I'd like to concentrate on in the context of edgeryders. If we can tap into bloated and headless defense budgets to do this (and save social budgets for other projects) it may merit a discussion.\n","comment_id":"18001","post_id":"4701","user_id":"6534","parent_comment_id":"17998","creation_date":"Thursday, June 11, 2015 - 16:50","group_id":"5954"}},{"node":{"title":"Slowly, slowly","content":"\nEasy does it :)\nI think the \"special edition community call\" will happen but not as next step. I'll try to assemble some info into a really short pitch - perhaps multiple pitches.\nMost likely what I'll do is something like a presentation of 10-15 slides with narration of project concepts, and some more explanation in the appendix to get people who are new to the topic onto the same page.\nIf I get the impression we have a fighting chance to reach \"critical mass\" for some sort of project (with various ways and degrees of participation), I'll try to frame it in a more orthodox way. I'll try to shoot for something that can start small, but demonstrates potential impact, and a path to ramp it up.\nRegarding \"gender \/ other peoples perception\":\nI'll take one step back.\nIn my opinion drones are at the point where many of the non-innovative, technologically skeptical, and clueless parts of society have decided that drones will play a significant role in the future*. I am not sure how large this part will actually be. I think it is a pretty complex problem, but that is a story for later.\nNow of course some actors smell a bigger market or faster ROI than others. These are likely to push for funding and policy changes (FAA & EASA), which may end up making alternative routes of development difficult or impossible. As drones have been largely developed in a military environment, this defines the perspective of many of these early players (to some degree) at least.\nHowever: We're about to introduce drones into many of our everyday lives - not just over the heads of an enemy army. We need to bring diverse public interests to the table. And we need to involve people into design decisions somehow. The reference to gender was because my impression has been that the female views don't seem to have a lot of traction in this. Nadia gave a good exception - but it has very few views. Here I am not talking so much about a lack of female engineers working on drones (quite a few do). I am more thinking about the global (especially: informal) economic activity that represents a large fraction of economic activity in developing nations. Also, I am thinking of female equality \/ empowerment \/ safety aspects which could be addressed more effectively if their voices were represented throughout the process.\n*Outside of the military.\nThey will definitely play a role on the battlefield - probably an important one. To be honest this is a field I am interested as well, because technology can often make military conflict significantly more \"humane\" or less \"humane\". And it often indirectly influences general power structures significantly over time. I think it is worthwhile to look at this - but I also think 99% of the time, 99% of the drones should be busy doing something less ambiguously beneficial. That is what I'd like to concentrate on in the context of edgeryders. If we can tap into bloated and headless defense budgets to do this (and save social budgets for other projects) it may merit a discussion.\n","comment_id":"18001","post_id":"4701","user_id":"6534","parent_comment_id":"17998","creation_date":"Thursday, June 11, 2015 - 16:50","group_id":"5954"}},{"node":{"title":"How can we help?","content":"\n@trythis\u00a0I am just catching up on this thread. It seems to me you are progressing into an initial writeup\/pitch.\u00a0\nHow can we help? Pro tip: I am not sure the community (myself included) will completely understand your hints. What does it mean to \"hear other people's perception on this\", and \"expressly into the social\/gender direction\"?\u00a0 For example: do you want to organize a \"special edition\" community call, taking some time and effort to evoke the \"right\" people? We could probably help with this.\nI\u00a0suppose\u00a0I could attempt to connect us with the Italian govt. I even have (exactly three) high-level contacts, but they are all in economic policy making, not in defence. I can shoot an email, but I need to tell them what I am looking for. Can you help me understand?\n","comment_id":"17998","post_id":"4701","user_id":"34","parent_comment_id":"17818","creation_date":"Thursday, June 11, 2015 - 15:16","group_id":"5954"}},{"node":{"title":"How can we help?","content":"\n@trythis\u00a0I am just catching up on this thread. It seems to me you are progressing into an initial writeup\/pitch.\u00a0\nHow can we help? Pro tip: I am not sure the community (myself included) will completely understand your hints. What does it mean to \"hear other people's perception on this\", and \"expressly into the social\/gender direction\"?\u00a0 For example: do you want to organize a \"special edition\" community call, taking some time and effort to evoke the \"right\" people? We could probably help with this.\nI\u00a0suppose\u00a0I could attempt to connect us with the Italian govt. I even have (exactly three) high-level contacts, but they are all in economic policy making, not in defence. I can shoot an email, but I need to tell them what I am looking for. Can you help me understand?\n","comment_id":"17998","post_id":"4701","user_id":"34","parent_comment_id":"17818","creation_date":"Thursday, June 11, 2015 - 15:16","group_id":"5954"}},{"node":{"title":"Some more leads","content":"\nWill get in touch with David Windest\u00e5l, thanks looks interesting :)\nAshley Dara does hardware in extreme environments and has done work in Nepal ping @Matthias. (thank you @Jean Russell\u00a0for the suggestion).\u00a0\nAnother one \u00a0is Emily Jacobi\u00a0https:\/\/youtu.be\/sf-2J0crYTQ\nAnother lead came through a Swedish connection, Will Slackfield\u00a0https:\/\/www.facebook.com\/willsackfield\n","comment_id":"17994","post_id":"4701","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, June 11, 2015 - 10:47","group_id":"5954"}},{"node":{"title":"Some more leads","content":"\nWill get in touch with David Windest\u00e5l, thanks looks interesting :)\nAshley Dara does hardware in extreme environments and has done work in Nepal ping @Matthias. (thank you @Jean Russell\u00a0for the suggestion).\u00a0\nAnother one \u00a0is Emily Jacobi\u00a0https:\/\/youtu.be\/sf-2J0crYTQ\nAnother lead came through a Swedish connection, Will Slackfield\u00a0https:\/\/www.facebook.com\/willsackfield\n","comment_id":"17994","post_id":"4701","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, June 11, 2015 - 10:47","group_id":"5954"}},{"node":{"title":"Good new leads - thanks!","content":"\nThose were blips that did not make it on my radar before - perhaps because they are more coming from an architect\/design\/society angle to this. I'll try to see if I can get a quick look inside the book somewhere to judge whether it is worth the money for me. Did you see the BAE ARGUS surveillance video I linked to somewhere? If you used that for city planning\/zoning it would be a very powerful tool - for good OR bad. I have difficulties believing we will collectively abstain from it on some moral grounds, especially in large cities.\u00a0\nThe more security concerned (but bottom-up) side is covered pretty fairly well from here (though the blog slowed down a lot). It still has a lot of good recommended reading.\nWhat I'd like to see is more info from the sustainable development and agri crowd. I know of \"the reforestation project\", but I am sceptical. I am particularly looking for the less formal and organized (lobby) voices.\n\u00a0\n","comment_id":"17993","post_id":"4701","user_id":"6534","parent_comment_id":"17991","creation_date":"Thursday, June 11, 2015 - 10:46","group_id":"5954"}},{"node":{"title":"Good new leads - thanks!","content":"\nThose were blips that did not make it on my radar before - perhaps because they are more coming from an architect\/design\/society angle to this. I'll try to see if I can get a quick look inside the book somewhere to judge whether it is worth the money for me. Did you see the BAE ARGUS surveillance video I linked to somewhere? If you used that for city planning\/zoning it would be a very powerful tool - for good OR bad. I have difficulties believing we will collectively abstain from it on some moral grounds, especially in large cities.\u00a0\nThe more security concerned (but bottom-up) side is covered pretty fairly well from here (though the blog slowed down a lot). It still has a lot of good recommended reading.\nWhat I'd like to see is more info from the sustainable development and agri crowd. I know of \"the reforestation project\", but I am sceptical. I am particularly looking for the less formal and organized (lobby) voices.\n\u00a0\n","comment_id":"17993","post_id":"4701","user_id":"6534","parent_comment_id":"17991","creation_date":"Thursday, June 11, 2015 - 10:46","group_id":"5954"}},{"node":{"title":"Sweden connection","content":"\nThis dude is probably one of the ones you'd be looking for:\nhttp:\/\/rcexplorer.se\/about-me\/\nIf he has a connection to Saab Aerospace - you'd probably cover a lot of ground on that basis. I have an old Saab connection but it is probably too old (also as in senior) to be worth much: http:\/\/www.lighterarena.se\/media\/177375\/pontus_nordin_saab.pdf\n","comment_id":"17992","post_id":"4701","user_id":"6534","parent_comment_id":"17983","creation_date":"Thursday, June 11, 2015 - 10:04","group_id":"5954"}},{"node":{"title":"Sweden connection","content":"\nThis dude is probably one of the ones you'd be looking for:\nhttp:\/\/rcexplorer.se\/about-me\/\nIf he has a connection to Saab Aerospace - you'd probably cover a lot of ground on that basis. I have an old Saab connection but it is probably too old (also as in senior) to be worth much: http:\/\/www.lighterarena.se\/media\/177375\/pontus_nordin_saab.pdf\n","comment_id":"17992","post_id":"4701","user_id":"6534","parent_comment_id":"17983","creation_date":"Thursday, June 11, 2015 - 10:04","group_id":"5954"}},{"node":{"title":"Reflections on drones affecting relation to physical space","content":"\nalthough not available for free, these friend of a friend's fictions and reflections on how drones might change culture, behaviour and our relation to physical space in the near future might be good food for thought. I find the urbanist\/architect take particularly interesting, since considering how soon-to-be-inconspicuous drones might build\/change the function and meaning of a living space feels accessible (both in imagining it, and shaping it, since there's no drone policing\/governance yet).\n\u00a0\n","comment_id":"17991","post_id":"4701","user_id":"6572","parent_comment_id":"0","creation_date":"Thursday, June 11, 2015 - 09:25","group_id":"5954"}},{"node":{"title":"Reflections on drones affecting relation to physical space","content":"\nalthough not available for free, these friend of a friend's fictions and reflections on how drones might change culture, behaviour and our relation to physical space in the near future might be good food for thought. I find the urbanist\/architect take particularly interesting, since considering how soon-to-be-inconspicuous drones might build\/change the function and meaning of a living space feels accessible (both in imagining it, and shaping it, since there's no drone policing\/governance yet).\n\u00a0\n","comment_id":"17991","post_id":"4701","user_id":"6572","parent_comment_id":"0","creation_date":"Thursday, June 11, 2015 - 09:25","group_id":"5954"}},{"node":{"title":"Prob Vinay","content":"\nPing @hexayurt\u00a0maybe also @LucasG. I'm quite curious about this and can maybe look for some stuff in Sweden. @Asta\u00a0has looked at space debris, but maybe she knows of people exploring this. Possibly @Smari\u00a0will know of people doing relevant work.\n","comment_id":"17983","post_id":"4701","user_id":"45","parent_comment_id":"17818","creation_date":"Wednesday, June 10, 2015 - 22:56","group_id":"5954"}},{"node":{"title":"Prob Vinay","content":"\nPing @hexayurt\u00a0maybe also @LucasG. I'm quite curious about this and can maybe look for some stuff in Sweden. @Asta\u00a0has looked at space debris, but maybe she knows of people exploring this. Possibly @Smari\u00a0will know of people doing relevant work.\n","comment_id":"17983","post_id":"4701","user_id":"45","parent_comment_id":"17818","creation_date":"Wednesday, June 10, 2015 - 22:56","group_id":"5954"}},{"node":{"title":"I can't say this use will make me love drones ","content":"\nBut it is a good example of things most would not think of. It also illustrates to what degree a technological \"arms race\" can influence society, and policies. Apparently they needed a mobile sensor to scan the environment for transmissions into the classroom.\n","comment_id":"17981","post_id":"4701","user_id":"6534","parent_comment_id":"17980","creation_date":"Wednesday, June 10, 2015 - 16:52","group_id":"5954"}},{"node":{"title":"I can't say this use will make me love drones ","content":"\nBut it is a good example of things most would not think of. It also illustrates to what degree a technological \"arms race\" can influence society, and policies. Apparently they needed a mobile sensor to scan the environment for transmissions into the classroom.\n","comment_id":"17981","post_id":"4701","user_id":"6534","parent_comment_id":"17980","creation_date":"Wednesday, June 10, 2015 - 16:52","group_id":"5954"}},{"node":{"title":"Just came across this article","content":"\nJust came across this article about how the Chinese use drones against cheating during exams.\u00a0\n","comment_id":"17980","post_id":"4701","user_id":"6028","parent_comment_id":"0","creation_date":"Wednesday, June 10, 2015 - 14:47","group_id":"5954"}},{"node":{"title":"Just came across this article","content":"\nJust came across this article about how the Chinese use drones against cheating during exams.\u00a0\n","comment_id":"17980","post_id":"4701","user_id":"6028","parent_comment_id":"0","creation_date":"Wednesday, June 10, 2015 - 14:47","group_id":"5954"}},{"node":{"title":"Anyone?","content":"\nI have some 150 pages of recent high-level talk of the established stakeholders at the German government, which I'll start to go through (conveniently linked to from here). I expect this is where we'll most easily identify typical organizational blind-spots and see what the motivation of each of the stakeholders is defined by.\nIf someone could do something similar for France, or Italy (or Britain, or any other place really) I'd be happy to compare our findings.\nI've also begun to dig into the blog scene of people who know about the military (including technical details) but have remained very critical of it. There are a few and they seem relatively tightly networked - though there's not much commentary. I did another skim of DIY drones, and have lots and lots of technical detail, and a large collection of US defense industry talks which will help understand better how they work in general, and again, provide blind spots, as well as arguments \u00e1 la: If THEY received THAT amount of funding for this BS, it'll border on criminal neglect not to give us seed fund at least.\n","comment_id":"17818","post_id":"4701","user_id":"6534","parent_comment_id":"17632","creation_date":"Tuesday, June 2, 2015 - 13:22","group_id":"5954"}},{"node":{"title":"Anyone?","content":"\nI have some 150 pages of recent high-level talk of the established stakeholders at the German government, which I'll start to go through (conveniently linked to from here). I expect this is where we'll most easily identify typical organizational blind-spots and see what the motivation of each of the stakeholders is defined by.\nIf someone could do something similar for France, or Italy (or Britain, or any other place really) I'd be happy to compare our findings.\nI've also begun to dig into the blog scene of people who know about the military (including technical details) but have remained very critical of it. There are a few and they seem relatively tightly networked - though there's not much commentary. I did another skim of DIY drones, and have lots and lots of technical detail, and a large collection of US defense industry talks which will help understand better how they work in general, and again, provide blind spots, as well as arguments \u00e1 la: If THEY received THAT amount of funding for this BS, it'll border on criminal neglect not to give us seed fund at least.\n","comment_id":"17818","post_id":"4701","user_id":"6534","parent_comment_id":"17632","creation_date":"Tuesday, June 2, 2015 - 13:22","group_id":"5954"}},{"node":{"title":"Drones - walk the talk","content":"\n@Matthias yeah I am tired of hearing what good drones could do but never seem to get around to actually doing. For example Nepal is not terribly far away from Pakistan where we know there is lots of drones loitering around. Many of them could have hopped over to Nepal with at max one stop-over for refueling in no time flat. I may have missed some (thanks for the link @Alberto ), but so far I haven't seen many of the unambiguously beneficial uses exploited a whole lot. And some of them have been blindingly obvious in the last couple of weeks, and really not difficult to get at least working on.\n\nI don't want to belittle the fact that there are many small initiatives all over the place, and in most cases there is a LOT more work going on inside than meets the eye. One of the problems I have though is that if large sums of government money are to be spent on such a technology - that obviously has a significant and very complex societal impact - we don't seem to bother to discuss it in an effective manner. Such an attempt would include the people that make the tech, the people that operate it, and - very important - the ones affected by it. Before we produce all the facts. With drones we are looking at a very wide range of outcomes we could end up with, some of them very difficult or impossible reverse. Also we should be aware of a problem's roots, even when we feel compelled to fight the symptoms. We need to keep track of the externalities of a technology, and stay realistic.\nAt the moment all money pretty much goes exclusively to the usual suspects. How can civil society, at least parts of the \"global south\", or women's voices be heard and considered in such a process? When would this be done if not in the early stages of making the concepts? Are the current practices established in industry conducive to such a process (large mil ind complex organizations elbowing for money)? How is their track record of managing such programs, that need to stay flexible and permeable to tackle a field full of unknown unknowns (and un-unknow some knowns in the process) - to say it with the words of Rumsfeld and \u017di\u017eek, respectively.\nOf course it won't be simple and it won't be without friction, but if I weigh this against the societal cost of opportunity, and ER's chance to help connect and guide many center actors through a very dynamic edge - the problem has our name written all over it. I would love to hear other people's perception on this before I publish the next steps I could envision this taking. I am not only looking at @Marc @francesco210173 @Baptiste Labat but expressly into the social\/gender direction (@noemi , @SamarAli , others - it is not super urgent but perhaps you know someone you can nudge when you are a little less busy than you must be now?)\n","comment_id":"17632","post_id":"4701","user_id":"6534","parent_comment_id":"0","creation_date":"Tuesday, May 26, 2015 - 12:25","group_id":"5954"}},{"node":{"title":"Drones - walk the talk","content":"\n@Matthias yeah I am tired of hearing what good drones could do but never seem to get around to actually doing. For example Nepal is not terribly far away from Pakistan where we know there is lots of drones loitering around. Many of them could have hopped over to Nepal with at max one stop-over for refueling in no time flat. I may have missed some (thanks for the link @Alberto ), but so far I haven't seen many of the unambiguously beneficial uses exploited a whole lot. And some of them have been blindingly obvious in the last couple of weeks, and really not difficult to get at least working on.\n\nI don't want to belittle the fact that there are many small initiatives all over the place, and in most cases there is a LOT more work going on inside than meets the eye. One of the problems I have though is that if large sums of government money are to be spent on such a technology - that obviously has a significant and very complex societal impact - we don't seem to bother to discuss it in an effective manner. Such an attempt would include the people that make the tech, the people that operate it, and - very important - the ones affected by it. Before we produce all the facts. With drones we are looking at a very wide range of outcomes we could end up with, some of them very difficult or impossible reverse. Also we should be aware of a problem's roots, even when we feel compelled to fight the symptoms. We need to keep track of the externalities of a technology, and stay realistic.\nAt the moment all money pretty much goes exclusively to the usual suspects. How can civil society, at least parts of the \"global south\", or women's voices be heard and considered in such a process? When would this be done if not in the early stages of making the concepts? Are the current practices established in industry conducive to such a process (large mil ind complex organizations elbowing for money)? How is their track record of managing such programs, that need to stay flexible and permeable to tackle a field full of unknown unknowns (and un-unknow some knowns in the process) - to say it with the words of Rumsfeld and \u017di\u017eek, respectively.\nOf course it won't be simple and it won't be without friction, but if I weigh this against the societal cost of opportunity, and ER's chance to help connect and guide many center actors through a very dynamic edge - the problem has our name written all over it. I would love to hear other people's perception on this before I publish the next steps I could envision this taking. I am not only looking at @Marc @francesco210173 @Baptiste Labat but expressly into the social\/gender direction (@noemi , @SamarAli , others - it is not super urgent but perhaps you know someone you can nudge when you are a little less busy than you must be now?)\n","comment_id":"17632","post_id":"4701","user_id":"6534","parent_comment_id":"0","creation_date":"Tuesday, May 26, 2015 - 12:25","group_id":"5954"}},{"node":{"title":"Yes! Given the damage drones did \u2026","content":"\n\u2026 it's about time drones save some lives and do some good. As for uses for drones in Nepal:\n\nExample of drone recon in Nepal after the earthquake (quite drastic HD footage near the epicenter).\nWhen we were in Bhorle village in the hills this week, an idea of using drones to connect the villages crossed my mind repeatedly. Their problem is: they are on neighboring hills with a valley in between, just 20 foot minutes or 5 bike minutes apart if there was a straight way, but instead it's 2 hours walking and climbing on rocky terrain without proper tracks or even stairs. I'm pretty sure drones are of no use here and it's just a first-world pseudo-solution \u2026 but I still hope they could be used to distribute medicines, small tools and parts etc. between the villages. With longer-range drones, it would be useful even for the very remote villages here (which are 4 days of walking to reach the nearest car-navigable street).\n\nFor illustration: Photo one of the kids in Bhorle took when we were there. The next village is barely visible in the top right corner. Deep valley and river in between.\n\n","comment_id":"17609","post_id":"4701","user_id":"36","parent_comment_id":"0","creation_date":"Monday, May 25, 2015 - 16:50","group_id":"5954"}},{"node":{"title":"Yes! Given the damage drones did \u2026","content":"\n\u2026 it's about time drones save some lives and do some good. As for uses for drones in Nepal:\n\nExample of drone recon in Nepal after the earthquake (quite drastic HD footage near the epicenter).\nWhen we were in Bhorle village in the hills this week, an idea of using drones to connect the villages crossed my mind repeatedly. Their problem is: they are on neighboring hills with a valley in between, just 20 foot minutes or 5 bike minutes apart if there was a straight way, but instead it's 2 hours walking and climbing on rocky terrain without proper tracks or even stairs. I'm pretty sure drones are of no use here and it's just a first-world pseudo-solution \u2026 but I still hope they could be used to distribute medicines, small tools and parts etc. between the villages. With longer-range drones, it would be useful even for the very remote villages here (which are 4 days of walking to reach the nearest car-navigable street).\n\nFor illustration: Photo one of the kids in Bhorle took when we were there. The next village is barely visible in the top right corner. Deep valley and river in between.\n\n","comment_id":"17609","post_id":"4701","user_id":"36","parent_comment_id":"0","creation_date":"Monday, May 25, 2015 - 16:50","group_id":"5954"}},{"node":{"title":"...","content":"\nThe issue of data protection and its breaches in healthcare is rather complex, and not exclusively technical.\nIt would be very interesting to witness a debate sprouting about the sense and scopes of data protection, but what we mostly have is a polarisation around data secrecy, and data sharing.\nIt is not possible to devise a set of rules (arbitrarily complicated) capable of consistently operate across all settings of care and life, remaining aligned with the reasons and goals those data were produced for in the first place.\n","comment_id":"16814","post_id":"4548","user_id":"2424","parent_comment_id":"0","creation_date":"Wednesday, April 22, 2015 - 11:07","group_id":"5954"}},{"node":{"title":"...","content":"\nThe issue of data protection and its breaches in healthcare is rather complex, and not exclusively technical.\nIt would be very interesting to witness a debate sprouting about the sense and scopes of data protection, but what we mostly have is a polarisation around data secrecy, and data sharing.\nIt is not possible to devise a set of rules (arbitrarily complicated) capable of consistently operate across all settings of care and life, remaining aligned with the reasons and goals those data were produced for in the first place.\n","comment_id":"16814","post_id":"4548","user_id":"2424","parent_comment_id":"0","creation_date":"Wednesday, April 22, 2015 - 11:07","group_id":"5954"}},{"node":{"title":"Interesting","content":"\nThat page seems to be a sort of fairly abstract description of what any project ought to look like. Its categories are very abstract: \"Create spaces\", \"Map interests\", \"Create structure\" etc. Each comes with deadline and deliverables. Each person running a project would fill in these fields as appropriate \u2013 in fact, quite similarly to what happens with European Commission-funded project (they have \"Excellence\", \"Impact\" etc.). Also the process people have used in the periscope case is similar: work on a GoogleDoc, then copy-paste into the Sensorica form. The point of copy-pasting seems to give people a way in to contribute (and be rewarded accordingly \u2013 kind of like Github + accounting). This is all reverse engineering, I am not actually seeing the accounting (no fields denominated in \u20ac or $ or whatever), but that might be due to my non-logged in status.\nWe have a similar system, except no forms. You have a project, you post it as a group on the platform and receive your basic tools for cooperation (wikis, tasks etc.), loosely coupled with what the whole community is doing. This is meant to maximize the chance that somebody you don't know will randomly walk in and turn out to be exactly the person needed for that project. People are encouraged to find their own ay to share, under Who Does The Work Calls The Shots \u2013 doers decide.\nA problem in ER is turning out to be how to reward the quite difficult and not always fun activity of making the sales. Not rewarding encourages waiting around for someone to walk in with a contract; rewarding it seems quite awkward, at least before you have some hard data on what it costs to do that kind of work (accounting for all the failed pitches). How do you guys do it in Sensorica? Does your accounting award a commission to people making successful sales? How much, if I may ask?\n\u00a0\n","comment_id":"16177","post_id":"4363","user_id":"34","parent_comment_id":"16151","creation_date":"Monday, March 9, 2015 - 10:00","group_id":"366"}},{"node":{"title":"interested and following","content":"\na comment to show interest and follow\nbeen learning a lot since I joined this community :)\n","comment_id":"16168","post_id":"4363","user_id":"5616","parent_comment_id":"0","creation_date":"Sunday, March 8, 2015 - 16:41","group_id":"366"}},{"node":{"title":"Hey :)","content":"\nSo I followed your link and couldn't really make sense of what the contents of that page want from me as a visitor. Are you trying to sell me something? Am I expected to post something somewhere?\nWe are looking at the same problem from different angles. I saw there was a need to put together an overview of how you actually generate revenue because for a lot of people it is kind of a black box. Then you can plug those skillsets into different contexts that operate under different rules. Your Open Value Networks Concept in my mind is one such context: I am looking at all the stuff that happens before a customer arrived at your door stating they want to contract you to do x thing for y amount of money.\nThe background story is that I had a meal with an Italian civil servant who has become friends with three homeless-ish guys in Milan. One of the guys is an Italian aristocrat who spent all his money. The second is a skilled Senegalese metal worker who lost his job as a factory worker. The third is a Maroccan guy who lives out of his car, and is not really specialised in any area.\nGuess which of the three is doing best?\n","comment_id":"16156","post_id":"4363","user_id":"45","parent_comment_id":"16151","creation_date":"Saturday, March 7, 2015 - 09:21","group_id":"366"}},{"node":{"title":"Collaborative ways of generating revenue","content":"\nHi all,\u00a0\nI got captivated by this thread, because this is precisely what we are trying to do at SENSORICA.\u00a0\n@Nadia \"I am looking at collaborative ways of generating revenue\u00a0for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky.\u00a0\"\nFirst, what is the value system? We need to map it first and that will determine how to set everything up for value to be created, distributed and for the benefits to be shared among participants. Second, there is a choice to be made about the type of environment we want to create. Is it about creating value in a corporate-type environment or in a peer production environment. Nadia's words above suggest that something like the second choice is preferred. People like us need to be free, want to contribute to different projects, want to be able to influence and take ownership of processes, want to share... So how do you set up an environment that allows value creation and its distribution but feels like a network and is build on openness, transparency, decentralized processes? This question is at the core of my activities since 2008 and my answer is the Open Value Network (OVN) model. There are a lot of hybrid models that try to go in that direction but preserve some of the old stuff, and I think that is because people are not ready or can't go all the way. Within SENSORICA \u00a0all projects are open, everyone can perform tasks, no barrier to value creation, and we use the value accounting system to redistribute the revenue. Networks that have projects formalized as a company, incubators and accelerators for example, don't have a lot of co-creation or exchanges between these entities. Within a value network projects are open and are only loosely formalized. If you have a system to track contributions you'll get a lot of value flows between projects, synergy increases, there is a lot of recycling and sharing of tangible and intangible resources. \u00a0\nWe are now prototyping services. A client makes a request, a group forms within the network and use the infrastructure to deliver. Here's one example\u00a0\nhttp:\/\/www.sensorica.co\/home\/what-we-do\/products\/offered-services\/barda-periscope-project\n","comment_id":"16151","post_id":"4363","user_id":"2050","parent_comment_id":"0","creation_date":"Friday, March 6, 2015 - 23:54","group_id":"366"}},{"node":{"title":"Sure","content":"\nLet's build the tasks for people to complete together? When should we schedule the first group call for, next thursday morning work for you?\n","comment_id":"16146","post_id":"4363","user_id":"45","parent_comment_id":"16142","creation_date":"Friday, March 6, 2015 - 19:52","group_id":"366"}},{"node":{"title":"Would be thrilled to help out","content":"\nYes, I completely agree with the remix.\nI looked at the way the course is going to be structured. This is indeed great, I like very much the idea of peer-to-peer feedback, and of weekly calls to state the advancements. We were doing this with the crowdmentoring programm that we organized with Babele in October, and it really works :-).\nMy remark regarding the course is that this is great for ideas that were not implemented yet, but it would be fantastic to adapt them to already existing ideas. For example if they already have an MVO, they would still need to figure out if they satisfy needs and if somebody is ready to pay for their service because it's creating value, but the focus, the questions, etc, would be different. What do you think?\u00a0\n\u00a0\n","comment_id":"16142","post_id":"4363","user_id":"5157","parent_comment_id":"16134","creation_date":"Friday, March 6, 2015 - 17:08","group_id":"366"}},{"node":{"title":"Yes I think we need to remix what is out there to work for us","content":"\nI am looking at collaborative ways of generating revenue for people working on the kinds of projects that pop up in this community and others. They rarely fit comfortably in existing categories (various mixes of startup, social enterprise, art project, activism, research etc etc) and they often require engineering different kinds social contracts which the same people to move between multiple roles e.g. user, consumer, cobuilder etc. without fear of exploitation. It's tricky. But maybe you want to build this together Ruxandra, as a join Babele Edgeryders project? Here's where the course is being shaped, feel free to jump right in:\u00a0https:\/\/edgeryders.eu\/en\/how-to-build-a-revenue-stream-to-support-your-activities-p2p-course\n","comment_id":"16134","post_id":"4363","user_id":"45","parent_comment_id":"16074","creation_date":"Friday, March 6, 2015 - 10:11","group_id":"366"}},{"node":{"title":"The lean startup methodology :-)","content":"\nHi Nadia,\nyes, great post. What you are saying actually is indeed the fact that there needs to be value creation for social purpose driven initiatives.\nFor it to be value driven, there need to be people that are ready to pay for the service.\nThe whole concept of testing with a Minimum viable product (MVP) or Minimum viable Offer (MVO) it's the ideas behind the lean startup philosophy.\nTest something from users, learn how to identify their needs (because they do not always express them directly) and how to create something that satisfies their needs creating enough value for them to really use your product\/service. Etc.\nI believe there is much to learn from the whole lean startup philosophy for people that want to change the way our world is driven. This is why we were organizing workshops on lean startup and collaborative business modeling (as the one organized in Stockholm). However, there are also limits of the lean startup principles. For example with Babele, we received the true validation of the concept only in October 2014, so 1 year and 2 months after having launched the platform. And we started selling services with the platform only in February 2015 (so 1 year and almost 6 months after). It takes a lot of patience in building professional products and services, and sometimes the lean startup philosophy invites people to give up too soon because they were not able to receive proper validation soon enough...\n","comment_id":"16074","post_id":"4363","user_id":"5157","parent_comment_id":"0","creation_date":"Tuesday, March 3, 2015 - 14:48","group_id":"366"}},{"node":{"title":"Ok so it seems there is an interest","content":"\nI have resisted doing this for a while out of time constraints, but it kept popping up as a need. A few minutes after this post went live I started getting emails from people who want to sign up for the course. Perhaps I should have set this up earlier, but as always...time time time.\n\u00a0\n\u00a0\n","comment_id":"16073","post_id":"4363","user_id":"45","parent_comment_id":"16067","creation_date":"Tuesday, March 3, 2015 - 14:26","group_id":"366"}},{"node":{"title":"Recommended","content":"\nWhat can I say, having learned quite a bit just by watching you work your magic :)\n@Ruxandra\u00a0wouldn't this be useful to your Babele team?\n\u00a0\n","comment_id":"16067","post_id":"4363","user_id":"32","parent_comment_id":"0","creation_date":"Tuesday, March 3, 2015 - 12:06","group_id":"366"}},{"node":{"title":"Gravitation is also overrated","content":"\nInteresting article of yours, just read it. Thanks for writing it! So, to be a bit heretical, one could say: Political rights are overrated. The only time you need them is if you need political change because of the current government being incompetent or corrupt. And given that the next government in Europe is usually just as incompetent and corrupt as the last one, they are of little use then either. The human rights record of democratic European governments with respect to creating a humanitarian crisis in Greece is also not that good :D In fact I'd like to see some statistics about what caused real betterment in democracies: Election-induced changes, or extra-constitutional changes?\nHowever, it's not yet decided. The latest Greek developments and the upcoming Spanish elections make me hope that elections can indeed (at times) be the peaceful, orderly revolution that we were always taught they are meant for. And where this works out, it's just great, literally a lifesaver.\nI'm taking too much though. Good night!\n","comment_id":"15854","post_id":"4294","user_id":"36","parent_comment_id":"15830","creation_date":"Wednesday, February 18, 2015 - 02:44","group_id":"366"}},{"node":{"title":"Things looking up","content":"\nOn the subject of things being in the process of improving in Ethiopia, I have written my own account of that journey. I was stricken by the \"Chinese syndrome\" of a technocratic government with a fairly poor human rights record which is, however, quite accountable and successful, and enjoys a high degree of consensus. For a Westerner, this can be unsettling!\n\u00a0\n","comment_id":"15830","post_id":"4294","user_id":"34","parent_comment_id":"0","creation_date":"Monday, February 16, 2015 - 14:39","group_id":"366"}},{"node":{"title":"History of conflict","content":"\nJust read up on modern Ethiopian history, since I didn't know anything about it. Interesting. The civil war story is sadly the same mess that state politics is everywhere from time to time :( (Newest European example being Ukraine.)\n\"Here and there, what we think of as religious and or ethnic conflicts are often intimately tied to underlying conflicts over resources like land or water.\" \u2013 To the point. Religious and cultural affiliation is often simply a lobbying \/ collective action tool for mundane interests.\n","comment_id":"15829","post_id":"4294","user_id":"36","parent_comment_id":"0","creation_date":"Monday, February 16, 2015 - 13:09","group_id":"366"}},{"node":{"title":"count me in ","content":"\njust realized I left the tab open without writing a comment here as I told u @Noemi\nwould like to learn more about the process of community \"managing\"\u00a0 and get a clearer picture by joining the team :)\n------\nfrom the 1st of August I will know more about how to manage my time to put more into this .\nlooking forward to \"continue\" collaboration with you\n","comment_id":"12784","post_id":"1990","user_id":"5616","parent_comment_id":"0","creation_date":"Monday, July 28, 2014 - 16:45","group_id":"5954"}},{"node":{"title":"count me in ","content":"\njust realized I left the tab open without writing a comment here as I told u @Noemi\nwould like to learn more about the process of community \"managing\"\u00a0 and get a clearer picture by joining the team :)\n------\nfrom the 1st of August I will know more about how to manage my time to put more into this .\nlooking forward to \"continue\" collaboration with you\n","comment_id":"12784","post_id":"1990","user_id":"5616","parent_comment_id":"0","creation_date":"Monday, July 28, 2014 - 16:45","group_id":"5954"}},{"node":{"title":"count me in ","content":"\njust realized I left the tab open without writing a comment here as I told u @Noemi\nwould like to learn more about the process of community \"managing\"\u00a0 and get a clearer picture by joining the team :)\n------\nfrom the 1st of August I will know more about how to manage my time to put more into this .\nlooking forward to \"continue\" collaboration with you\n","comment_id":"12784","post_id":"1990","user_id":"5616","parent_comment_id":"0","creation_date":"Monday, July 28, 2014 - 16:45","group_id":"5954"}},{"node":{"title":"","content":"need a few moments to maybe make a flyer for this!\n","comment_id":"7725","post_id":"1990","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, December 11, 2013 - 00:15","group_id":"5954"}},{"node":{"title":"","content":"need a few moments to maybe make a flyer for this!\n","comment_id":"7725","post_id":"1990","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, December 11, 2013 - 00:15","group_id":"5954"}},{"node":{"title":"","content":"need a few moments to maybe make a flyer for this!\n","comment_id":"7725","post_id":"1990","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, December 11, 2013 - 00:15","group_id":"5954"}},{"node":{"title":"Great, great work","content":"This is fantastic work, [Noemi]. Thank you so much for taking the time to write it. I posted a link to it in the e-mint mailing list (watering hole for professional community managers). I absolutely love it for its freshness and simplicity.\n","comment_id":"7722","post_id":"1990","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, December 10, 2013 - 19:34","group_id":"5954"}},{"node":{"title":"Great, great work","content":"This is fantastic work, [Noemi]. Thank you so much for taking the time to write it. I posted a link to it in the e-mint mailing list (watering hole for professional community managers). I absolutely love it for its freshness and simplicity.\n","comment_id":"7722","post_id":"1990","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, December 10, 2013 - 19:34","group_id":"5954"}},{"node":{"title":"Great, great work","content":"This is fantastic work, [Noemi]. Thank you so much for taking the time to write it. I posted a link to it in the e-mint mailing list (watering hole for professional community managers). I absolutely love it for its freshness and simplicity.\n","comment_id":"7722","post_id":"1990","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, December 10, 2013 - 19:34","group_id":"5954"}},{"node":{"title":"you can count me in :) (of course :)","content":"Hi Noemi :)\n\n\u00a0\n\nI would like to help with all this (of course)\n\nI also enjoy a lot doing this,\u00a0and I have learned a lot about the cool things about community 'management' in edgeryder's style :)\n\n\u00a0with you over the last weeks and months :)\n\n\u00a0\n\nbut I would like to learn more and we are always learning by doing ...\n\n\u00a0\n\nand I would be very happy to be more in touch with yourself as part of the package :)\n\n\u00a0\n\nHugs :)\n","comment_id":"7622","post_id":"1990","user_id":"1531","parent_comment_id":"0","creation_date":"Tuesday, December 3, 2013 - 12:53","group_id":"5954"}},{"node":{"title":"you can count me in :) (of course :)","content":"Hi Noemi :)\n\n\u00a0\n\nI would like to help with all this (of course)\n\nI also enjoy a lot doing this,\u00a0and I have learned a lot about the cool things about community 'management' in edgeryder's style :)\n\n\u00a0with you over the last weeks and months :)\n\n\u00a0\n\nbut I would like to learn more and we are always learning by doing ...\n\n\u00a0\n\nand I would be very happy to be more in touch with yourself as part of the package :)\n\n\u00a0\n\nHugs :)\n","comment_id":"7622","post_id":"1990","user_id":"1531","parent_comment_id":"0","creation_date":"Tuesday, December 3, 2013 - 12:53","group_id":"5954"}},{"node":{"title":"you can count me in :) (of course :)","content":"Hi Noemi :)\n\n\u00a0\n\nI would like to help with all this (of course)\n\nI also enjoy a lot doing this,\u00a0and I have learned a lot about the cool things about community 'management' in edgeryder's style :)\n\n\u00a0with you over the last weeks and months :)\n\n\u00a0\n\nbut I would like to learn more and we are always learning by doing ...\n\n\u00a0\n\nand I would be very happy to be more in touch with yourself as part of the package :)\n\n\u00a0\n\nHugs :)\n","comment_id":"7622","post_id":"1990","user_id":"1531","parent_comment_id":"0","creation_date":"Tuesday, December 3, 2013 - 12:53","group_id":"5954"}},{"node":{"title":"Cooperatives and Community Supported Agriculture","content":"There is a growing :) movement in Poland, that originates from urban food cooperatives (buying food straight from local farmers). A natural step up is to get into long-term relationship with one of farmers and combine her\/his proficiency and land with enthusiasm and labour of cooperatists. In most developed cases (Freiburg, Germany for example) the cooperative owns the land and some of cooperatists are professional farmers, running the production. In Freiburg (http:\/\/www.gartencoop.org\/freiburg\/) every coop member spends 4 days per year working on the farm, plus some support for food distribution, plus paying share of cost coverage.As a result they set up a well-balanced system, where, without commercial relationships, everyone has their needs covered. The completely excluded State and City Hall from their loop, which personally pleases me the most. ;-)Anyway, going through the model of Community Supported Agriculture seems to be a way to lower the treshold between guerilla gardening and serious food poduction. And you need no-one to give you anything - it is purely a win-win system.","comment_id":"5249","post_id":"1160","user_id":"68","parent_comment_id":"3085","creation_date":"Friday, November 16, 2012 - 08:14","group_id":"5954"}},{"node":{"title":"Cooperatives and Community Supported Agriculture","content":"There is a growing :) movement in Poland, that originates from urban food cooperatives (buying food straight from local farmers). A natural step up is to get into long-term relationship with one of farmers and combine her\/his proficiency and land with enthusiasm and labour of cooperatists. In most developed cases (Freiburg, Germany for example) the cooperative owns the land and some of cooperatists are professional farmers, running the production. In Freiburg (http:\/\/www.gartencoop.org\/freiburg\/) every coop member spends 4 days per year working on the farm, plus some support for food distribution, plus paying share of cost coverage.As a result they set up a well-balanced system, where, without commercial relationships, everyone has their needs covered. The completely excluded State and City Hall from their loop, which personally pleases me the most. ;-)Anyway, going through the model of Community Supported Agriculture seems to be a way to lower the treshold between guerilla gardening and serious food poduction. And you need no-one to give you anything - it is purely a win-win system.","comment_id":"5249","post_id":"1160","user_id":"68","parent_comment_id":"3085","creation_date":"Friday, November 16, 2012 - 08:14","group_id":"5954"}},{"node":{"title":"Sounds familiar...","content":"The \"Protestant work ethic\" of the working classes sounds like a typical form of authoritarianism, in which the resentment of the powerless against the powerful is sublimated instead into resentment against those who manage to evade their power.","comment_id":"4663","post_id":"1167","user_id":"371","parent_comment_id":"3627","creation_date":"Saturday, July 21, 2012 - 01:26","group_id":"5954"}},{"node":{"title":"Sounds familiar...","content":"The \"Protestant work ethic\" of the working classes sounds like a typical form of authoritarianism, in which the resentment of the powerless against the powerful is sublimated instead into resentment against those who manage to evade their power.","comment_id":"4663","post_id":"1167","user_id":"371","parent_comment_id":"3627","creation_date":"Saturday, July 21, 2012 - 01:26","group_id":"5954"}},{"node":{"title":"The Idler and other thoughts","content":"My uncle occassionally writes for a magazine called The Idler. From their wikipedia page\"[a] characteristic of the idler's work is that it looks suspiciously like play. This, again, makes the non-idler feel uncomfortable. Victims of the Protestant work ethic would like all work to be unpleasant. They feel that work is a curse, that we must suffer on this earth to earn our place in the next. The idler, on the other hand, sees no reason not to use his brain to organise a life for himself where his play is his work, and so attempt to create his own little paradise in the here and now.\"His life is suspiciously like a big game and he is a pleasure to be around.I think that its very important to enjoy yourself :)\u00a0 Also, like apparently many other Edgeryders, to stand back and think what it is you really want to do\/achieve in life, rather than concentrating on a \"good\" well paid job with \"good\" career prospects.","comment_id":"4659","post_id":"1167","user_id":"439","parent_comment_id":"3574","creation_date":"Saturday, July 21, 2012 - 00:22","group_id":"5954"}},{"node":{"title":"The Idler and other thoughts","content":"My uncle occassionally writes for a magazine called The Idler. From their wikipedia page\"[a] characteristic of the idler's work is that it looks suspiciously like play. This, again, makes the non-idler feel uncomfortable. Victims of the Protestant work ethic would like all work to be unpleasant. They feel that work is a curse, that we must suffer on this earth to earn our place in the next. The idler, on the other hand, sees no reason not to use his brain to organise a life for himself where his play is his work, and so attempt to create his own little paradise in the here and now.\"His life is suspiciously like a big game and he is a pleasure to be around.I think that its very important to enjoy yourself :)\u00a0 Also, like apparently many other Edgeryders, to stand back and think what it is you really want to do\/achieve in life, rather than concentrating on a \"good\" well paid job with \"good\" career prospects.","comment_id":"4659","post_id":"1167","user_id":"439","parent_comment_id":"3574","creation_date":"Saturday, July 21, 2012 - 00:22","group_id":"5954"}},{"node":{"title":"Excellent article","content":"There has always been work, in the sense of transforming human effort into subsistence. But that's only been organized in the form of \"jobs\" for a comparatively short period. And the main reason for that was that the shift in the First Industrial Revolution from production primarily with general-purpose, individually affordable craft tools to production with extremely specialized, expensive machinery in factories. The result was that only associations of the very rich could afford the factories, and then they hired propertyless proles to work the machinery for them on terms set by themselves. Today, with open hardware micromanufacturing, permaculture and open-source information production, that trend is being reversed -- most production can be carried out now with individually affordable tools. It's mainly patents and copyrights, and other state-enforced monopolies, that enable the corporate dinosaurs to retain control over access to the means of production. So we need to destroy the power of the corporations (by ignoring their monopolies and rendering them unenforceable) and the concept of the \"job\" along with it, and shift work into household self-provisioning and the informal and local economies.","comment_id":"4655","post_id":"1167","user_id":"371","parent_comment_id":"0","creation_date":"Friday, July 20, 2012 - 23:14","group_id":"5954"}},{"node":{"title":"Excellent article","content":"There has always been work, in the sense of transforming human effort into subsistence. But that's only been organized in the form of \"jobs\" for a comparatively short period. And the main reason for that was that the shift in the First Industrial Revolution from production primarily with general-purpose, individually affordable craft tools to production with extremely specialized, expensive machinery in factories. The result was that only associations of the very rich could afford the factories, and then they hired propertyless proles to work the machinery for them on terms set by themselves. Today, with open hardware micromanufacturing, permaculture and open-source information production, that trend is being reversed -- most production can be carried out now with individually affordable tools. It's mainly patents and copyrights, and other state-enforced monopolies, that enable the corporate dinosaurs to retain control over access to the means of production. So we need to destroy the power of the corporations (by ignoring their monopolies and rendering them unenforceable) and the concept of the \"job\" along with it, and shift work into household self-provisioning and the informal and local economies.","comment_id":"4655","post_id":"1167","user_id":"371","parent_comment_id":"0","creation_date":"Friday, July 20, 2012 - 23:14","group_id":"5954"}},{"node":{"title":"May be the point here is","content":"May be the point here is \"job\" VS \"meaningless job I hate\".Rushkoff has a good job.","comment_id":"4612","post_id":"1167","user_id":"423","parent_comment_id":"0","creation_date":"Wednesday, July 18, 2012 - 23:21","group_id":"5954"}},{"node":{"title":"May be the point here is","content":"May be the point here is \"job\" VS \"meaningless job I hate\".Rushkoff has a good job.","comment_id":"4612","post_id":"1167","user_id":"423","parent_comment_id":"0","creation_date":"Wednesday, July 18, 2012 - 23:21","group_id":"5954"}},{"node":{"title":"semi autonomous tribes ","content":"have no holidays :( ","comment_id":"4610","post_id":"1167","user_id":"423","parent_comment_id":"3008","creation_date":"Wednesday, July 18, 2012 - 22:47","group_id":"5954"}},{"node":{"title":"semi autonomous tribes ","content":"have no holidays :( ","comment_id":"4610","post_id":"1167","user_id":"423","parent_comment_id":"3008","creation_date":"Wednesday, July 18, 2012 - 22:47","group_id":"5954"}},{"node":{"title":"unlearning our mindset","content":"thanks for your comment! I agree that the first step is unlearning our mindset and get rid off the values that tie us to organize work in jobs. I certainly will read the work of Rob Black for this. to be continued...grtz Carlien","comment_id":"4608","post_id":"1167","user_id":"402","parent_comment_id":"3555","creation_date":"Wednesday, July 18, 2012 - 21:25","group_id":"5954"}},{"node":{"title":"unlearning our mindset","content":"thanks for your comment! I agree that the first step is unlearning our mindset and get rid off the values that tie us to organize work in jobs. I certainly will read the work of Rob Black for this. to be continued...grtz Carlien","comment_id":"4608","post_id":"1167","user_id":"402","parent_comment_id":"3555","creation_date":"Wednesday, July 18, 2012 - 21:25","group_id":"5954"}},{"node":{"title":"Coder remarks","content":"Yes, you do have some good pointers on existing ways to achieve data interoperability. Yet as a coder, I mostly have to agree with Alberto: data is still sooo messy these days.The only thing worse than no standards is too many standards, and we seem to be in this time of evolving standards. People are trying out new data formats and richer forms of representation, and that's ok - it will take some more years before the mist clears up.We could be faster with this cleanup if the first thing everyone does when involved in an open data related project is agreeing with the global community on a common solution before implementing something own. But then again, grassroots decision mechanisms for agreeing on global data standards are missing ...\u00a0. So far, a standard confusion cleanup happens mostly when one ingenious and hard-woring single project's group produces the biggest and best data set in their area, and others take it over.In our startup, we're using Freebase as one source of open data (in this case, about products, but they also deal with everything else). Just one example of the standard mess, as they develop their own data structures - but it's one of the larger examples, so maybe some of their proposals will be accepted as industry standards one day.So, there's still a lot of work before we reach full data automation :)","comment_id":"4594","post_id":"1158","user_id":"36","parent_comment_id":"3541","creation_date":"Wednesday, July 18, 2012 - 15:40","group_id":"5954"}},{"node":{"title":"Coder remarks","content":"Yes, you do have some good pointers on existing ways to achieve data interoperability. Yet as a coder, I mostly have to agree with Alberto: data is still sooo messy these days.The only thing worse than no standards is too many standards, and we seem to be in this time of evolving standards. People are trying out new data formats and richer forms of representation, and that's ok - it will take some more years before the mist clears up.We could be faster with this cleanup if the first thing everyone does when involved in an open data related project is agreeing with the global community on a common solution before implementing something own. But then again, grassroots decision mechanisms for agreeing on global data standards are missing ...\u00a0. So far, a standard confusion cleanup happens mostly when one ingenious and hard-woring single project's group produces the biggest and best data set in their area, and others take it over.In our startup, we're using Freebase as one source of open data (in this case, about products, but they also deal with everything else). Just one example of the standard mess, as they develop their own data structures - but it's one of the larger examples, so maybe some of their proposals will be accepted as industry standards one day.So, there's still a lot of work before we reach full data automation :)","comment_id":"4594","post_id":"1158","user_id":"36","parent_comment_id":"3541","creation_date":"Wednesday, July 18, 2012 - 15:40","group_id":"5954"}},{"node":{"title":"The Abolition of Work","content":"Found this just now and thought I'd add a thought to the mix :)The \"job\" concept is just one of the ways how a society can organize the distribution of resources and work. It's the most petty one of all. Apt for those who want to profit from eymployees in a mechanical way which does not have to imply any generosity, care or adherence to society as a whole. This petty joy-based accounting of course also binds much resources just for accounting itself ... and for checking that the employees work ...But now that \"we\" as Western society have taken hundreds of years to develop and refine this accounting based system of paid jobs, and all of us got raised in it, I doubt it could easily change on large scale to something like the communal work found in some African tribes. Or just to basic income - we have that discussion again in Germany, but it's stuck in its infancy. We're infected with a renitent meme and have no quick way out (as a whole society, not as individuals).But the first step is unlearning this mindset and these values that ties us to organize work in jobs. Once, I found a great classic article that really helps to do so. It's quite sharp and exaggerating (and hilariously funny), so everybody take it with a grain of salt. But for recognizing just how much my own mindset was tied to the job idea it really helped:Rob Black: The Abolition of Work","comment_id":"4590","post_id":"1167","user_id":"36","parent_comment_id":"0","creation_date":"Wednesday, July 18, 2012 - 01:31","group_id":"5954"}},{"node":{"title":"The Abolition of Work","content":"Found this just now and thought I'd add a thought to the mix :)The \"job\" concept is just one of the ways how a society can organize the distribution of resources and work. It's the most petty one of all. Apt for those who want to profit from eymployees in a mechanical way which does not have to imply any generosity, care or adherence to society as a whole. This petty joy-based accounting of course also binds much resources just for accounting itself ... and for checking that the employees work ...But now that \"we\" as Western society have taken hundreds of years to develop and refine this accounting based system of paid jobs, and all of us got raised in it, I doubt it could easily change on large scale to something like the communal work found in some African tribes. Or just to basic income - we have that discussion again in Germany, but it's stuck in its infancy. We're infected with a renitent meme and have no quick way out (as a whole society, not as individuals).But the first step is unlearning this mindset and these values that ties us to organize work in jobs. Once, I found a great classic article that really helps to do so. It's quite sharp and exaggerating (and hilariously funny), so everybody take it with a grain of salt. But for recognizing just how much my own mindset was tied to the job idea it really helped:Rob Black: The Abolition of Work","comment_id":"4590","post_id":"1167","user_id":"36","parent_comment_id":"0","creation_date":"Wednesday, July 18, 2012 - 01:31","group_id":"5954"}},{"node":{"title":"Caught within the demographic of the people who initiate it?","content":"Hi Darren,A couple of thoughts:(1) At Access Space we have put active thought into how t include people who are UNLIKE us. We have a protocol for greeting newcomers (the 10 second rule) and we concentrate hard on trying to accommodate people who come from a completely different mindset. There are all sorts of reasons why it's clever to do this - a diverse social network has greater perspective and greater collective intelligence (see James Suroweicki). However, the action of doing this over an extended period is REALLY hard work, and needs to be done well.If you'd like to understand the Access Space formula, check out our comic book \"Grow Your Own Media Lab\": http:\/\/bit.ly\/GYOML(2) Artists are particularly interesting people in demographic terms - their lifestyle, outlook, and society's perception of them allows them to connect vertically, linking people from different socio-economic groups. The biographies of many artists show that they hang out with princes and paupers, bankers and beggars. As well as running Access Space, I am an artist, and I wonder whether this gives me a particular license to link with diverse people.I hope this helps!Best regards,James\u00a0","comment_id":"4589","post_id":"1148","user_id":"71","parent_comment_id":"3552","creation_date":"Tuesday, July 17, 2012 - 17:52","group_id":"5954"}},{"node":{"title":"Caught within the demographic of the people who initiate it?","content":"Hi Darren,A couple of thoughts:(1) At Access Space we have put active thought into how t include people who are UNLIKE us. We have a protocol for greeting newcomers (the 10 second rule) and we concentrate hard on trying to accommodate people who come from a completely different mindset. There are all sorts of reasons why it's clever to do this - a diverse social network has greater perspective and greater collective intelligence (see James Suroweicki). However, the action of doing this over an extended period is REALLY hard work, and needs to be done well.If you'd like to understand the Access Space formula, check out our comic book \"Grow Your Own Media Lab\": http:\/\/bit.ly\/GYOML(2) Artists are particularly interesting people in demographic terms - their lifestyle, outlook, and society's perception of them allows them to connect vertically, linking people from different socio-economic groups. The biographies of many artists show that they hang out with princes and paupers, bankers and beggars. As well as running Access Space, I am an artist, and I wonder whether this gives me a particular license to link with diverse people.I hope this helps!Best regards,James\u00a0","comment_id":"4589","post_id":"1148","user_id":"71","parent_comment_id":"3552","creation_date":"Tuesday, July 17, 2012 - 17:52","group_id":"5954"}},{"node":{"title":"Occupy \/ Indagnados \/ Arab Spring","content":"These mass movements appear to cut across many social groups and although often not as visable as they were continue spawn various projects that build social infrastructure","comment_id":"4588","post_id":"1148","user_id":"439","parent_comment_id":"3536","creation_date":"Tuesday, July 17, 2012 - 13:36","group_id":"5954"}},{"node":{"title":"Occupy \/ Indagnados \/ Arab Spring","content":"These mass movements appear to cut across many social groups and although often not as visable as they were continue spawn various projects that build social infrastructure","comment_id":"4588","post_id":"1148","user_id":"439","parent_comment_id":"3536","creation_date":"Tuesday, July 17, 2012 - 13:36","group_id":"5954"}},{"node":{"title":"Examples of building social infastructure","content":"Two examples immediately jump to my mind,Although I'm not sure how much either one cuts across different social networks.Transition (Towns) Network - Often is accused of being white and middle class.Co-operative Integral Catalonia - which is, I guess, primarily attracting people with reasonably radical political views.Also some community food projects attract a reasonably varied demographic - one I go to often has children who have been excluded from school participating, they attend with a teacher\/social worker during school times - some keep coming back after they have left school.I guess its natural that any new 'initative' will, to some degree, tend to get caught within the demographic of the people who initiate it - Not only who they know, but also how they look, how they speak will effect the amount people can relate to their project.\/end\/after thoughtGuess I should of looked up what homophily means before writing this reply :).\u00a0 Now that I have I can't think of any really strong examples.\u00a0 Possibly some activist (political or issue based) networks - where people have a strong shared interest in co-operating?\u00a0\u00a0 I suppose its always going to take effort to connect with people that you aren't familiar\/comfortable with.\u00a0\u00a0","comment_id":"4587","post_id":"1148","user_id":"439","parent_comment_id":"3536","creation_date":"Tuesday, July 17, 2012 - 13:13","group_id":"5954"}},{"node":{"title":"Examples of building social infastructure","content":"Two examples immediately jump to my mind,Although I'm not sure how much either one cuts across different social networks.Transition (Towns) Network - Often is accused of being white and middle class.Co-operative Integral Catalonia - which is, I guess, primarily attracting people with reasonably radical political views.Also some community food projects attract a reasonably varied demographic - one I go to often has children who have been excluded from school participating, they attend with a teacher\/social worker during school times - some keep coming back after they have left school.I guess its natural that any new 'initative' will, to some degree, tend to get caught within the demographic of the people who initiate it - Not only who they know, but also how they look, how they speak will effect the amount people can relate to their project.\/end\/after thoughtGuess I should of looked up what homophily means before writing this reply :).\u00a0 Now that I have I can't think of any really strong examples.\u00a0 Possibly some activist (political or issue based) networks - where people have a strong shared interest in co-operating?\u00a0\u00a0 I suppose its always going to take effort to connect with people that you aren't familiar\/comfortable with.\u00a0\u00a0","comment_id":"4587","post_id":"1148","user_id":"439","parent_comment_id":"3536","creation_date":"Tuesday, July 17, 2012 - 13:13","group_id":"5954"}},{"node":{"title":"Interoperability","content":"Yeah Alberto I've done some bits of data masssaging and it can be very time consuming.Some stuff is automatically interoperable though.A while back I noticed that this mapping site - http:\/\/sharefoodforest.org\/ (which appears to use mapquest) was showing the same data and using the same icons as this Incredible Edible google map - http:\/\/s.coop\/rh1x\u00a0\u00a0I was thinking that sharefoodforest was somehow pulling data automatically from the google map but I notice looking now that there is new data on the google map that is not replicated on sharefoodforest.\u00a0Having just looked at the Sharefoodforest map again I notice that if you click top right of the map their are KML files you can tick on\/off- I'm guessing these have somehow been downloaded from google maps - not sure if this could be automated??\u00a0 Guess it should somehow be possible?There is also this http:\/\/www.mediawiki.org\/wiki\/Extension:Semantic_Maps and there are other efforts that I've seen to make mapping data more interoperable but I forgot to bookmark them :(Obviously occasionally you get data that has been entered incorrectly etc. and I can see that human intervention is likely always to be sometimes needed (if only to update entries). If the entry process is designed carefully errors should be less frequent.\u00a0 I like the wikipedia model - open up the editing process, then if people find a tool valuable they will share the work of editing dodgy data rather than it all resting on the shoulders of a few admins.\u00a0","comment_id":"4576","post_id":"1158","user_id":"439","parent_comment_id":"3538","creation_date":"Monday, July 16, 2012 - 00:29","group_id":"5954"}},{"node":{"title":"Interoperability","content":"Yeah Alberto I've done some bits of data masssaging and it can be very time consuming.Some stuff is automatically interoperable though.A while back I noticed that this mapping site - http:\/\/sharefoodforest.org\/ (which appears to use mapquest) was showing the same data and using the same icons as this Incredible Edible google map - http:\/\/s.coop\/rh1x\u00a0\u00a0I was thinking that sharefoodforest was somehow pulling data automatically from the google map but I notice looking now that there is new data on the google map that is not replicated on sharefoodforest.\u00a0Having just looked at the Sharefoodforest map again I notice that if you click top right of the map their are KML files you can tick on\/off- I'm guessing these have somehow been downloaded from google maps - not sure if this could be automated??\u00a0 Guess it should somehow be possible?There is also this http:\/\/www.mediawiki.org\/wiki\/Extension:Semantic_Maps and there are other efforts that I've seen to make mapping data more interoperable but I forgot to bookmark them :(Obviously occasionally you get data that has been entered incorrectly etc. and I can see that human intervention is likely always to be sometimes needed (if only to update entries). If the entry process is designed carefully errors should be less frequent.\u00a0 I like the wikipedia model - open up the editing process, then if people find a tool valuable they will share the work of editing dodgy data rather than it all resting on the shoulders of a few admins.\u00a0","comment_id":"4576","post_id":"1158","user_id":"439","parent_comment_id":"3538","creation_date":"Monday, July 16, 2012 - 00:29","group_id":"5954"}},{"node":{"title":"...","content":"...","comment_id":"4575","post_id":"1148","user_id":"1921","parent_comment_id":"0","creation_date":"Monday, July 16, 2012 - 00:10","group_id":"5954"}},{"node":{"title":"...","content":"...","comment_id":"4575","post_id":"1148","user_id":"1921","parent_comment_id":"0","creation_date":"Monday, July 16, 2012 - 00:10","group_id":"5954"}},{"node":{"title":"Big word","content":"\"Automated\" is a very big word in these contexts, Darren. Even the better standardized examples tend to be quite messy. I participate in the open data movement, and in principle everyone is all semantic; but at the end of the day you always have to do manual work to mesh up any two datasets. In fact, you very often have to do some manual cleanup even to use just one dataset. The more interoperable dataset is not one that is designed according to state-of-the-art specs and then left alone, but one that has somebody who cares for it\u00a0standing guard. That person can help anyone who wants to use the data make sense of what is not immediately clear, will patiently check new data as they come in to make sure they stack well with those that are already in there, try to keep the dataset up-to-date etc.I don't disagree with you: you should still try to plan for interoperability to be built in. But even with the best plan full automation is likely to be very difficult or impossible.","comment_id":"4573","post_id":"1158","user_id":"34","parent_comment_id":"3535","creation_date":"Sunday, July 15, 2012 - 20:53","group_id":"5954"}},{"node":{"title":"Big word","content":"\"Automated\" is a very big word in these contexts, Darren. Even the better standardized examples tend to be quite messy. I participate in the open data movement, and in principle everyone is all semantic; but at the end of the day you always have to do manual work to mesh up any two datasets. In fact, you very often have to do some manual cleanup even to use just one dataset. The more interoperable dataset is not one that is designed according to state-of-the-art specs and then left alone, but one that has somebody who cares for it\u00a0standing guard. That person can help anyone who wants to use the data make sense of what is not immediately clear, will patiently check new data as they come in to make sure they stack well with those that are already in there, try to keep the dataset up-to-date etc.I don't disagree with you: you should still try to plan for interoperability to be built in. But even with the best plan full automation is likely to be very difficult or impossible.","comment_id":"4573","post_id":"1158","user_id":"34","parent_comment_id":"3535","creation_date":"Sunday, July 15, 2012 - 20:53","group_id":"5954"}},{"node":{"title":"Social infrastructure and resilience","content":"Hi Brewster,\n\nyour post has been at the back of mind for a while. I find it difficult to craft a response that accurately captures my thought on the topics you raise. Essentially I am asking myself whether it is possible to contribute towards building social infrastructure that makes everyone more resilient in a society- how to weave webs of empathy and trust that cut across different social networks. That don't tend towards homophily :) Actually Im looking for examples of this in action to learn from...","comment_id":"4572","post_id":"1148","user_id":"45","parent_comment_id":"0","creation_date":"Sunday, July 15, 2012 - 14:15","group_id":"5954"}},{"node":{"title":"Social infrastructure and resilience","content":"Hi Brewster,\n\nyour post has been at the back of mind for a while. I find it difficult to craft a response that accurately captures my thought on the topics you raise. Essentially I am asking myself whether it is possible to contribute towards building social infrastructure that makes everyone more resilient in a society- how to weave webs of empathy and trust that cut across different social networks. That don't tend towards homophily :) Actually Im looking for examples of this in action to learn from...","comment_id":"4572","post_id":"1148","user_id":"45","parent_comment_id":"0","creation_date":"Sunday, July 15, 2012 - 14:15","group_id":"5954"}},{"node":{"title":"Interoperability and co-ordination","content":"I guess its best if coordination can be as automated as possible, saving the necessity for individuals to have to work hard pulling things together.\u00a0 Also I guess giving some structure to interactions \/ work makes things easier.Examples of interoperability -http:\/\/www.w3.org\/community\/fedsocweb\/http:\/\/en.wikipedia.org\/wiki\/Semantic_webI follow this stuff a bit but I'm not a coder or data cruncher so I guess others would have a better handle on this stuff.I'm involved around the edges of Open Source Ecology.\u00a0 As far as I can tell it operated largely on the huge efforts of the founder and love of those who liked it - until recently when major funding started to flow and, I think, individuals were recruited to help with the organisation \/ co-ordination.There have been a few efforts to make the organisation\/co-ordination more stream lined by using agile \/ scrum software development methods.\u00a0 The adoption of this has been a bit bumpy and is still under development, but to some degree, it appears to be working.\u00a0 It needs some work to organise and educate about the methodology and the time and self discipline of individuals to ensure that there is really good documentation (comprehensive updates of work done \/ work that needs doing).Here is the 'working' page on the OSE wikihttp:\/\/opensourceecology.org\/wiki\/Flashy_XMThe great thing about this methodology is that, if done right, it facilitates swarming on the work load.\u00a0 If people see value they can take on and complete tasks.\u00a0 Tasks are made as small as possible so its easy to complete.Get enough people intersted in your work, organise well and then be amazed at how quickly things happen.BestDarrenPS that is the second time an Edgeryder has mentioned 'Project of How' to me in less than 12 hours.... guess I'm going to have to take a good look.","comment_id":"4571","post_id":"1158","user_id":"439","parent_comment_id":"3533","creation_date":"Sunday, July 15, 2012 - 12:17","group_id":"5954"}},{"node":{"title":"Interoperability and co-ordination","content":"I guess its best if coordination can be as automated as possible, saving the necessity for individuals to have to work hard pulling things together.\u00a0 Also I guess giving some structure to interactions \/ work makes things easier.Examples of interoperability -http:\/\/www.w3.org\/community\/fedsocweb\/http:\/\/en.wikipedia.org\/wiki\/Semantic_webI follow this stuff a bit but I'm not a coder or data cruncher so I guess others would have a better handle on this stuff.I'm involved around the edges of Open Source Ecology.\u00a0 As far as I can tell it operated largely on the huge efforts of the founder and love of those who liked it - until recently when major funding started to flow and, I think, individuals were recruited to help with the organisation \/ co-ordination.There have been a few efforts to make the organisation\/co-ordination more stream lined by using agile \/ scrum software development methods.\u00a0 The adoption of this has been a bit bumpy and is still under development, but to some degree, it appears to be working.\u00a0 It needs some work to organise and educate about the methodology and the time and self discipline of individuals to ensure that there is really good documentation (comprehensive updates of work done \/ work that needs doing).Here is the 'working' page on the OSE wikihttp:\/\/opensourceecology.org\/wiki\/Flashy_XMThe great thing about this methodology is that, if done right, it facilitates swarming on the work load.\u00a0 If people see value they can take on and complete tasks.\u00a0 Tasks are made as small as possible so its easy to complete.Get enough people intersted in your work, organise well and then be amazed at how quickly things happen.BestDarrenPS that is the second time an Edgeryder has mentioned 'Project of How' to me in less than 12 hours.... guess I'm going to have to take a good look.","comment_id":"4571","post_id":"1158","user_id":"439","parent_comment_id":"3533","creation_date":"Sunday, July 15, 2012 - 12:17","group_id":"5954"}},{"node":{"title":"Interoperability and coordination costs","content":"Hi Darren,I'm interested in this interoperability thing, mentioned it during the better support session at #edgecamp. Do you have example of those kinds of initatives?My guess is that the coordination and facilitation cost for a useful outcome is often underestimated. Because it is sort of invisible- you see the outcome in the end but not the value of the contributions that made it happen. Which is why I think Ola's approach with his project of how is interesting. And I think it's relevant to understand in our case what kinds of invisible efforts and participants in are essentional to the success of projects that contribute to the common good. I wonder for example about the Open Source Ecology project- where is the social glue coming from...is it just the shared purpose that drives it or is some solid work going into the community building and who is doing it under which conditions...I seem to remember Elf mentioning personal projects aimed at achieving tech interoperability between different initiatives to better enable us to support each other's projects. I wonder which ones are working and what the main challenges are in building more technical interoperability: http:\/\/edgeryders.ppa.coe.int\/where-edgeryders-dare\/mission_case\/travelling-moneyless-berlin-reflections-road","comment_id":"4569","post_id":"1158","user_id":"45","parent_comment_id":"3532","creation_date":"Sunday, July 15, 2012 - 11:13","group_id":"5954"}},{"node":{"title":"Interoperability and coordination costs","content":"Hi Darren,I'm interested in this interoperability thing, mentioned it during the better support session at #edgecamp. Do you have example of those kinds of initatives?My guess is that the coordination and facilitation cost for a useful outcome is often underestimated. Because it is sort of invisible- you see the outcome in the end but not the value of the contributions that made it happen. Which is why I think Ola's approach with his project of how is interesting. And I think it's relevant to understand in our case what kinds of invisible efforts and participants in are essentional to the success of projects that contribute to the common good. I wonder for example about the Open Source Ecology project- where is the social glue coming from...is it just the shared purpose that drives it or is some solid work going into the community building and who is doing it under which conditions...I seem to remember Elf mentioning personal projects aimed at achieving tech interoperability between different initiatives to better enable us to support each other's projects. I wonder which ones are working and what the main challenges are in building more technical interoperability: http:\/\/edgeryders.ppa.coe.int\/where-edgeryders-dare\/mission_case\/travelling-moneyless-berlin-reflections-road","comment_id":"4569","post_id":"1158","user_id":"45","parent_comment_id":"3532","creation_date":"Sunday, July 15, 2012 - 11:13","group_id":"5954"}},{"node":{"title":"Mapping food (and other resources)","content":"I've been bookmarking mapping tools for some time now, particularly those with a focus on food, alternative economics and community development.\u00a0 There are a lot of them about - which in some ways is good, although it means the data is dispersed - pity they aren't all linked together.\u00a0Semantic web technologies and interoperability between various mapping platforms will eventually mean that data from different mapping tools will largely be aggregated and we should be able to search any area and find results from many different mapping tools.\u00a0 There are various efforts in this direction.With this in mind I like to favour mapping tools with open data, also open source mapping tools as they open more possibilities in an 'open' direction.My bookmarks -http:\/\/www.diigo.com\/search?adSScope=my&what=gis&sort=updated&snapshot=no\u00a0","comment_id":"4568","post_id":"1158","user_id":"439","parent_comment_id":"3333","creation_date":"Sunday, July 15, 2012 - 10:55","group_id":"5954"}},{"node":{"title":"Mapping food (and other resources)","content":"I've been bookmarking mapping tools for some time now, particularly those with a focus on food, alternative economics and community development.\u00a0 There are a lot of them about - which in some ways is good, although it means the data is dispersed - pity they aren't all linked together.\u00a0Semantic web technologies and interoperability between various mapping platforms will eventually mean that data from different mapping tools will largely be aggregated and we should be able to search any area and find results from many different mapping tools.\u00a0 There are various efforts in this direction.With this in mind I like to favour mapping tools with open data, also open source mapping tools as they open more possibilities in an 'open' direction.My bookmarks -http:\/\/www.diigo.com\/search?adSScope=my&what=gis&sort=updated&snapshot=no\u00a0","comment_id":"4568","post_id":"1158","user_id":"439","parent_comment_id":"3333","creation_date":"Sunday, July 15, 2012 - 10:55","group_id":"5954"}},{"node":{"title":"Food mapping","content":"Just disovered this food mapping tool which may be of interest to those interested in my report above:http:\/\/www.foodmapper.org.uk\/If you live in the UK and know of initiatives, projects and land that are not listed, why not pass the information on?","comment_id":"4381","post_id":"1158","user_id":"424","parent_comment_id":"0","creation_date":"Monday, June 25, 2012 - 18:17","group_id":"5954"}},{"node":{"title":"Food mapping","content":"Just disovered this food mapping tool which may be of interest to those interested in my report above:http:\/\/www.foodmapper.org.uk\/If you live in the UK and know of initiatives, projects and land that are not listed, why not pass the information on?","comment_id":"4381","post_id":"1158","user_id":"424","parent_comment_id":"0","creation_date":"Monday, June 25, 2012 - 18:17","group_id":"5954"}},{"node":{"title":"makes sense","content":"Yes - that all makes sense - look forward to discussing it in person, which I find much easier! I'm very interested in health, and in terms of policy rather than practive I am maybe better informed than on food (perhaps, anyway) - but from a anti-privatisation direction, rather than a treatment \/ resilient-to-emergencies perspective...I haven't seen \"the long discussion following Vinay's \"War\" post touched, among other things, onto the difficulty to sell resilience\", but will seek it out. I'm not so sure about the difficulty 'selling' the concept of resilience... it seems to be almost everywhere at the moment (almost as ubiquitous - and approaching the level of confusion over meaning - as 'sustainable'). I'm not keen on the language of 'selling' things either - how about 'get people excited about', 'inspire', 'enthuse', 'educate' or 'teach' - do we have to use the language of markets and marketing? I don't want to be a snake-oil salesman for 'resilience' as a concept or policy - I want to live in a resilient neighbourhood\/locality\/community\/country\/continent\/world! Yes, that will involve policy, but more importantly, it will involve people!","comment_id":"4256","post_id":"1205","user_id":"424","parent_comment_id":"3175","creation_date":"Thursday, June 14, 2012 - 02:09","group_id":"5954"}},{"node":{"title":"makes sense","content":"Yes - that all makes sense - look forward to discussing it in person, which I find much easier! I'm very interested in health, and in terms of policy rather than practive I am maybe better informed than on food (perhaps, anyway) - but from a anti-privatisation direction, rather than a treatment \/ resilient-to-emergencies perspective...I haven't seen \"the long discussion following Vinay's \"War\" post touched, among other things, onto the difficulty to sell resilience\", but will seek it out. I'm not so sure about the difficulty 'selling' the concept of resilience... it seems to be almost everywhere at the moment (almost as ubiquitous - and approaching the level of confusion over meaning - as 'sustainable'). I'm not keen on the language of 'selling' things either - how about 'get people excited about', 'inspire', 'enthuse', 'educate' or 'teach' - do we have to use the language of markets and marketing? I don't want to be a snake-oil salesman for 'resilience' as a concept or policy - I want to live in a resilient neighbourhood\/locality\/community\/country\/continent\/world! Yes, that will involve policy, but more importantly, it will involve people!","comment_id":"4256","post_id":"1205","user_id":"424","parent_comment_id":"3175","creation_date":"Thursday, June 14, 2012 - 02:09","group_id":"5954"}},{"node":{"title":"union of the visions","content":"Yes Luca, we need more time to speak better of this importants\u00a0themes! However think that you are speaking in the specific of the health care theme and it's an important discussion with experts. I worked as volunteer in many emergency field and I saw any problems about the logistic, organizzation and security. But I undestood that the first problem that during a lot in the time is the comunication immediatly after the disaster, the comunication tools for the citizens and istitutitutions to collaborate and restart and rebuilt and also the trasparency of the comunication.\u00a0It's true that there are many instrument active as these you show me in the precedente post and these are ok for the international crisis, but there are many national crisis where the comunication don't work, the problem it's worst at local level. For exampke it was a terrible problem for the earthquake in Molise and it was the same in the earthquake in Abruzzo or for the floods in Liguria. the people could not to spaek with anyone: friends, parents, security, policy, istitutions, they are isolated. Then, when the comunications started again there were many problems to administrate the prioritys for the istitutions and also fot the citizens it was a problem to understand the situation and to get the right comunications.so I thought or I dream :-)\u00a0 a software system with tecnological tools to install in the emergency filed useful to adminisrtate better the situation and also the security and specially the psychological status of the people. Also only a call of a friend, a think or a specific answer at a request of the peolple it's very important, I touch with my hand.So Luca I'm at completly disposition to built anything is usefull for our objectives! I hope that we can meet and learn by the experience and vision of all.Come on!Ciao\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0","comment_id":"4250","post_id":"1205","user_id":"410","parent_comment_id":"3184","creation_date":"Thursday, June 14, 2012 - 00:14","group_id":"5954"}},{"node":{"title":"union of the visions","content":"Yes Luca, we need more time to speak better of this importants\u00a0themes! However think that you are speaking in the specific of the health care theme and it's an important discussion with experts. I worked as volunteer in many emergency field and I saw any problems about the logistic, organizzation and security. But I undestood that the first problem that during a lot in the time is the comunication immediatly after the disaster, the comunication tools for the citizens and istitutitutions to collaborate and restart and rebuilt and also the trasparency of the comunication.\u00a0It's true that there are many instrument active as these you show me in the precedente post and these are ok for the international crisis, but there are many national crisis where the comunication don't work, the problem it's worst at local level. For exampke it was a terrible problem for the earthquake in Molise and it was the same in the earthquake in Abruzzo or for the floods in Liguria. the people could not to spaek with anyone: friends, parents, security, policy, istitutions, they are isolated. Then, when the comunications started again there were many problems to administrate the prioritys for the istitutions and also fot the citizens it was a problem to understand the situation and to get the right comunications.so I thought or I dream :-)\u00a0 a software system with tecnological tools to install in the emergency filed useful to adminisrtate better the situation and also the security and specially the psychological status of the people. Also only a call of a friend, a think or a specific answer at a request of the peolple it's very important, I touch with my hand.So Luca I'm at completly disposition to built anything is usefull for our objectives! I hope that we can meet and learn by the experience and vision of all.Come on!Ciao\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0","comment_id":"4250","post_id":"1205","user_id":"410","parent_comment_id":"3184","creation_date":"Thursday, June 14, 2012 - 00:14","group_id":"5954"}},{"node":{"title":"union of the visions","content":"Yes Luca, we need more time to speak better of this importants\u00a0themes! However think that you are speaking in the specific of the health care theme and it's an important discussion with experts. I worked as volunteer in many emergency field and I saw any problems about the logistic, organizzation and security. But I undestood that the first problem that during a lot in the time is the comunication immediatly after the disaster, the comunication tools for the citizens and istitutitutions to collaborate and restart and rebuilt and also the trasparency of the comunication.\u00a0It's true that there are many instrument active as these you show me in the precedente post and these are ok for the international crisis, but there are many national crisis where the comunication don't work, the problem it's worst at local level. For exampke it was a terrible problem for the earthquake in Molise and it was the same in the earthquake in Abruzzo or for the floods in Liguria. the people could not to spaek with anyone: friends, parents, security, policy, istitutions, they are isolated. Then, when the comunications started again there were many problems to administrate the prioritys for the istitutions and also fot the citizens it was a problem to understand the situation and to get the right comunications.so I thought or I dream :-)\u00a0 a software system with tecnological tools to install in the emergency filed useful to adminisrtate better the situation and also the security and specially the psychological status of the people. Also only a call of a friend, a think or a specific answer at a request of the peolple it's very important, I touch with my hand.So Luca I'm at completly disposition to built anything is usefull for our objectives! I hope that we can meet and learn by the experience and vision of all.Come on!Ciao\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0","comment_id":"4249","post_id":"1205","user_id":"410","parent_comment_id":"3184","creation_date":"Thursday, June 14, 2012 - 00:14","group_id":"5954"}},{"node":{"title":"union of the visions","content":"Yes Luca, we need more time to speak better of this importants\u00a0themes! However think that you are speaking in the specific of the health care theme and it's an important discussion with experts. I worked as volunteer in many emergency field and I saw any problems about the logistic, organizzation and security. But I undestood that the first problem that during a lot in the time is the comunication immediatly after the disaster, the comunication tools for the citizens and istitutitutions to collaborate and restart and rebuilt and also the trasparency of the comunication.\u00a0It's true that there are many instrument active as these you show me in the precedente post and these are ok for the international crisis, but there are many national crisis where the comunication don't work, the problem it's worst at local level. For exampke it was a terrible problem for the earthquake in Molise and it was the same in the earthquake in Abruzzo or for the floods in Liguria. the people could not to spaek with anyone: friends, parents, security, policy, istitutions, they are isolated. Then, when the comunications started again there were many problems to administrate the prioritys for the istitutions and also fot the citizens it was a problem to understand the situation and to get the right comunications.so I thought or I dream :-)\u00a0 a software system with tecnological tools to install in the emergency filed useful to adminisrtate better the situation and also the security and specially the psychological status of the people. Also only a call of a friend, a think or a specific answer at a request of the peolple it's very important, I touch with my hand.So Luca I'm at completly disposition to built anything is usefull for our objectives! I hope that we can meet and learn by the experience and vision of all.Come on!Ciao\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0","comment_id":"4249","post_id":"1205","user_id":"410","parent_comment_id":"3184","creation_date":"Thursday, June 14, 2012 - 00:14","group_id":"5954"}},{"node":{"title":"networks","content":"I'm eager to learn about your findings.I can imagine information and knowledge flowing to where it's needed, but it's very vague at the moment.I read somewhere that it's a good idea to have some \"silent time\" within the session, so that we can each write our notes. That way, each of us enriches the set of useful ideas, increasing originality.We'll see, I hope!","comment_id":"4244","post_id":"1205","user_id":"343","parent_comment_id":"3176","creation_date":"Wednesday, June 13, 2012 - 18:46","group_id":"5954"}},{"node":{"title":"networks","content":"I'm eager to learn about your findings.I can imagine information and knowledge flowing to where it's needed, but it's very vague at the moment.I read somewhere that it's a good idea to have some \"silent time\" within the session, so that we can each write our notes. That way, each of us enriches the set of useful ideas, increasing originality.We'll see, I hope!","comment_id":"4244","post_id":"1205","user_id":"343","parent_comment_id":"3176","creation_date":"Wednesday, June 13, 2012 - 18:46","group_id":"5954"}},{"node":{"title":"Fastly set-up communications","content":"Hi, Emiliano. I hope you're better rested when you read this.Communications systems that are deployed quickly are helpful in many (or all!) emergencies, and from what I've been reading (Haiti, frontlineSMS, open-source mapping systems, crisiscamp, etc) they are being used more and more in rapid emergencies.This makes me think about the nature of an economic meltdown. A person becomes unemployed in a day. But for a community the process happens gradually - or maybe there are \"jumps\" when compensation mechanisms (help from families or from unemployment funds) themselves fail and, almost with a noise, snap broken. So, in fewer words, I don't really know how quickly this will play out.In any case, that's one potential difference between economic meltdown and other crises: speed.Another difference is how much communication is needed, and at what distance. In a forest fire, it may be enough if a few teams are interconnected by radio. Within the team, communication may happen via voice.For societal resilience in the field of health, maybe much of the communication that's needed is within shouting distance? Or much of the communication that's needed is long-distance? I hope we'll be able to look into that via the analysis of networks and health.If there's not a phone for each person (share!), maybe we'll need to walk more. Which is healthy if you can walk. Or maybe we need to have the younger ones use their bike and visit the ill. Or some communication is inside a building, if people can talk from window to window.medic.frontlinesms.com comes to mind ...I'm starting to see this \"health resilience\" experiment as a point in a hologram: I feel I'll be learning about other kinds of crisis too.(But we need to design something, and I don't see it yet.)","comment_id":"4243","post_id":"1205","user_id":"343","parent_comment_id":"3181","creation_date":"Wednesday, June 13, 2012 - 18:39","group_id":"5954"}},{"node":{"title":"Fastly set-up communications","content":"Hi, Emiliano. I hope you're better rested when you read this.Communications systems that are deployed quickly are helpful in many (or all!) emergencies, and from what I've been reading (Haiti, frontlineSMS, open-source mapping systems, crisiscamp, etc) they are being used more and more in rapid emergencies.This makes me think about the nature of an economic meltdown. A person becomes unemployed in a day. But for a community the process happens gradually - or maybe there are \"jumps\" when compensation mechanisms (help from families or from unemployment funds) themselves fail and, almost with a noise, snap broken. So, in fewer words, I don't really know how quickly this will play out.In any case, that's one potential difference between economic meltdown and other crises: speed.Another difference is how much communication is needed, and at what distance. In a forest fire, it may be enough if a few teams are interconnected by radio. Within the team, communication may happen via voice.For societal resilience in the field of health, maybe much of the communication that's needed is within shouting distance? Or much of the communication that's needed is long-distance? I hope we'll be able to look into that via the analysis of networks and health.If there's not a phone for each person (share!), maybe we'll need to walk more. Which is healthy if you can walk. Or maybe we need to have the younger ones use their bike and visit the ill. Or some communication is inside a building, if people can talk from window to window.medic.frontlinesms.com comes to mind ...I'm starting to see this \"health resilience\" experiment as a point in a hologram: I feel I'll be learning about other kinds of crisis too.(But we need to design something, and I don't see it yet.)","comment_id":"4243","post_id":"1205","user_id":"343","parent_comment_id":"3181","creation_date":"Wednesday, June 13, 2012 - 18:39","group_id":"5954"}},{"node":{"title":"hey Luca ciao, for me it","content":"hey Luca ciao, for me it would be an honour to have a role in this project, because I also wrote somethings as your project, but more of the comunications. sorry if now I don't write very well or undestrand but\u00a0 I did an hard trip: I started from stoccolma at 3:00 o'clock, pass for Berlino, Baden Baden, strasbourg by train and the berlino airline lost my bag....So if it's possible I would undestrand better the project and the works to do... I wrote something similar but more of the comunications. I thought to improve the priority of the comunications between citizens and istitutions during an emergency in a field (as those of the protection civil) with tecnological toolmand software to install in the field!the speed it's all after the first hours of the natural disaster.... I saw with my eyes in Aquila and Emilia Romagna!\u00a0\u00a0","comment_id":"4240","post_id":"1205","user_id":"410","parent_comment_id":"0","creation_date":"Wednesday, June 13, 2012 - 16:49","group_id":"5954"}},{"node":{"title":"hey Luca ciao, for me it","content":"hey Luca ciao, for me it would be an honour to have a role in this project, because I also wrote somethings as your project, but more of the comunications. sorry if now I don't write very well or undestrand but\u00a0 I did an hard trip: I started from stoccolma at 3:00 o'clock, pass for Berlino, Baden Baden, strasbourg by train and the berlino airline lost my bag....So if it's possible I would undestrand better the project and the works to do... I wrote something similar but more of the comunications. I thought to improve the priority of the comunications between citizens and istitutions during an emergency in a field (as those of the protection civil) with tecnological toolmand software to install in the field!the speed it's all after the first hours of the natural disaster.... I saw with my eyes in Aquila and Emilia Romagna!\u00a0\u00a0","comment_id":"4240","post_id":"1205","user_id":"410","parent_comment_id":"0","creation_date":"Wednesday, June 13, 2012 - 16:49","group_id":"5954"}},{"node":{"title":"I'm so in!","content":"I am so in on this, and have been doing a lot of heavy-lifting-thinking about networked approaches to health and a networks understanding to resilience... TBC at the conference :)","comment_id":"4235","post_id":"1205","user_id":"415","parent_comment_id":"0","creation_date":"Wednesday, June 13, 2012 - 12:41","group_id":"5954"}},{"node":{"title":"I'm so in!","content":"I am so in on this, and have been doing a lot of heavy-lifting-thinking about networked approaches to health and a networks understanding to resilience... TBC at the conference :)","comment_id":"4235","post_id":"1205","user_id":"415","parent_comment_id":"0","creation_date":"Wednesday, June 13, 2012 - 12:41","group_id":"5954"}},{"node":{"title":"Hard choices","content":"Hey James, I hear what you are saying. All of your points are sound, though I disagree with the final one (will come to that in a minute).We are facing two constraints here. The shape the session takes is very much a function of that.One: 2.5 hours means we have to choose a subset of a subset of a subset of an issue, or it will be unmanageable. Health care in\u00a0 a financial meltdown was suggested by Vinay as a means to (1) connect to the upcoming Greek elections (next week they could find it very hard to pay forn their national health service as the public sector runs into a liquidity stonewall) and (2) take advantage of Lucas's expertise. Now of course, with you and Simone, we have in the session two people who have hands.on experience of permaculture, and the session could be rearranged around food security (for example: how can a 20K inhabitants city in, say, Northern France achieve self-sufficiency in food production?). I am good with that, but then you have to take the lead!Two: the selling argument. The long discussion following Vinay's \"War\" post touched, among other things, onto the difficulty to sell resilience. #LOTE is after all a big governmental setting, so people will be looking at us with a lot of skepticism. We thought it would be a nice chance to hone our skills at pitching resilience as a sound, sensible policy issue. So, tactically we stay away from \"zombie apocalypse\" narrative and try to impress the audience with our pragmatism and technical smarts.Now to the point of contention:No, this does not look much like business continuity planning to me. Reason: we are going to stay clear from linearity assumptions (see my Too linear comment below). Once you do that, you refocus on needs (a very different thing from demand), and the business side of the equation melts away. If the exercise were just about how to float a downsized version of the same system you already have, then of course you would be right. But there is probably no way that's a defensible approach in a financial meltdown, so we get to be radical and realistic at the same time.Makes sense?\u00a0","comment_id":"4234","post_id":"1205","user_id":"34","parent_comment_id":"3158","creation_date":"Wednesday, June 13, 2012 - 12:00","group_id":"5954"}},{"node":{"title":"Hard choices","content":"Hey James, I hear what you are saying. All of your points are sound, though I disagree with the final one (will come to that in a minute).We are facing two constraints here. The shape the session takes is very much a function of that.One: 2.5 hours means we have to choose a subset of a subset of a subset of an issue, or it will be unmanageable. Health care in\u00a0 a financial meltdown was suggested by Vinay as a means to (1) connect to the upcoming Greek elections (next week they could find it very hard to pay forn their national health service as the public sector runs into a liquidity stonewall) and (2) take advantage of Lucas's expertise. Now of course, with you and Simone, we have in the session two people who have hands.on experience of permaculture, and the session could be rearranged around food security (for example: how can a 20K inhabitants city in, say, Northern France achieve self-sufficiency in food production?). I am good with that, but then you have to take the lead!Two: the selling argument. The long discussion following Vinay's \"War\" post touched, among other things, onto the difficulty to sell resilience. #LOTE is after all a big governmental setting, so people will be looking at us with a lot of skepticism. We thought it would be a nice chance to hone our skills at pitching resilience as a sound, sensible policy issue. So, tactically we stay away from \"zombie apocalypse\" narrative and try to impress the audience with our pragmatism and technical smarts.Now to the point of contention:No, this does not look much like business continuity planning to me. Reason: we are going to stay clear from linearity assumptions (see my Too linear comment below). Once you do that, you refocus on needs (a very different thing from demand), and the business side of the equation melts away. If the exercise were just about how to float a downsized version of the same system you already have, then of course you would be right. But there is probably no way that's a defensible approach in a financial meltdown, so we get to be radical and realistic at the same time.Makes sense?\u00a0","comment_id":"4234","post_id":"1205","user_id":"34","parent_comment_id":"3158","creation_date":"Wednesday, June 13, 2012 - 12:00","group_id":"5954"}},{"node":{"title":"Past consumption as reference","content":"Actually, we shouldn't really look at how much medication we've been using.We should look at real problems, whatever that is. The old issue of \"silent high blood pressure\" vs \"obvious need for conversation\".Could networks filter what matters? I wonder.","comment_id":"4227","post_id":"1205","user_id":"343","parent_comment_id":"3150","creation_date":"Wednesday, June 13, 2012 - 02:23","group_id":"5954"}},{"node":{"title":"Past consumption as reference","content":"Actually, we shouldn't really look at how much medication we've been using.We should look at real problems, whatever that is. The old issue of \"silent high blood pressure\" vs \"obvious need for conversation\".Could networks filter what matters? I wonder.","comment_id":"4227","post_id":"1205","user_id":"343","parent_comment_id":"3150","creation_date":"Wednesday, June 13, 2012 - 02:23","group_id":"5954"}},{"node":{"title":"prevention and treatment","content":"If someone with chronic bronquitis stops smoking, he (it used to be a \"he\", anyway) will still have chronic bronquitis.We need to do both.Both without much money, but with lots of other ingredients. which we should look for, and cook well.","comment_id":"4226","post_id":"1205","user_id":"343","parent_comment_id":"3156","creation_date":"Wednesday, June 13, 2012 - 02:17","group_id":"5954"}},{"node":{"title":"prevention and treatment","content":"If someone with chronic bronquitis stops smoking, he (it used to be a \"he\", anyway) will still have chronic bronquitis.We need to do both.Both without much money, but with lots of other ingredients. which we should look for, and cook well.","comment_id":"4226","post_id":"1205","user_id":"343","parent_comment_id":"3156","creation_date":"Wednesday, June 13, 2012 - 02:17","group_id":"5954"}},{"node":{"title":"General and specific resilience","content":"I too think \"resilience\" is about a variety of threats, not always one at a time. \"Interesting threats\" (speaking Chinese here) - say climate change, peak oil, bad pandemics, etc - all have a tendency to be locally not-easy to predict, and then fluid when they evolve. So, for example, a financial meltdown can start out bad or worse, and may later conceivably morph into, well, war. If the threat is (or becomes) bad enough, domino effects start to happen, and then it almost doesn't matter what started it. Resilience that keeps a broad view, but that's also locally specific, is - I think - the way to go.Now, we only have 2.5 hours, so I think we need to do like when we eat spaghetti: select where to stick the fork, then spin the fork once or twice depending on how big our mouth is.If we go for \"health\":1) We could use a strictly limited time to look at a few \"worst impacts in vital areas\". No need to cover it all, and no need to agree on everything. But we might \"mostly agree\" on a few priorities, like, I don't know, \"young diabetics would die without insulin\", \"baby delivery and heart attacks still happen\", \"what if I break my skull\", \"some vaccines are clearly useful\", \"we'll see the effects of current overweight and smoking in a few years\", or whatever it is that we agree on.2) Then, we could look for ways to serve those vital, persistent needs - the system may break, but the needs stay. (Not with business as usual, because this is not about \"saving the grid\" but about \"staying warm in winter\". Focus on needs, not in old systems.) We don't need to be experts in technicalities, and I'd personally find it a good secondary outcome if we come up with a list of questions for specialists. But certainly we can use everything we know how to use: networks of people, lateral thinking, permacultural design, and whatever we all bring.I'm for it, and we'll see.","comment_id":"4225","post_id":"1205","user_id":"343","parent_comment_id":"3158","creation_date":"Wednesday, June 13, 2012 - 02:12","group_id":"5954"}},{"node":{"title":"General and specific resilience","content":"I too think \"resilience\" is about a variety of threats, not always one at a time. \"Interesting threats\" (speaking Chinese here) - say climate change, peak oil, bad pandemics, etc - all have a tendency to be locally not-easy to predict, and then fluid when they evolve. So, for example, a financial meltdown can start out bad or worse, and may later conceivably morph into, well, war. If the threat is (or becomes) bad enough, domino effects start to happen, and then it almost doesn't matter what started it. Resilience that keeps a broad view, but that's also locally specific, is - I think - the way to go.Now, we only have 2.5 hours, so I think we need to do like when we eat spaghetti: select where to stick the fork, then spin the fork once or twice depending on how big our mouth is.If we go for \"health\":1) We could use a strictly limited time to look at a few \"worst impacts in vital areas\". No need to cover it all, and no need to agree on everything. But we might \"mostly agree\" on a few priorities, like, I don't know, \"young diabetics would die without insulin\", \"baby delivery and heart attacks still happen\", \"what if I break my skull\", \"some vaccines are clearly useful\", \"we'll see the effects of current overweight and smoking in a few years\", or whatever it is that we agree on.2) Then, we could look for ways to serve those vital, persistent needs - the system may break, but the needs stay. (Not with business as usual, because this is not about \"saving the grid\" but about \"staying warm in winter\". Focus on needs, not in old systems.) We don't need to be experts in technicalities, and I'd personally find it a good secondary outcome if we come up with a list of questions for specialists. But certainly we can use everything we know how to use: networks of people, lateral thinking, permacultural design, and whatever we all bring.I'm for it, and we'll see.","comment_id":"4225","post_id":"1205","user_id":"343","parent_comment_id":"3158","creation_date":"Wednesday, June 13, 2012 - 02:12","group_id":"5954"}},{"node":{"title":"A few comments","content":"Don't have time to properly think about this before travelling but a few comments off the top of my head:\u00a01. Financial meltdown? Resilience is about being adaptable and surviving unknown shocks - so wouldn't it be better to think about the resilience of a health system to a variety of shocks not just one?2. What are the problems of financial meltdown - we could easily spend (or waste, depending on your point of view) the whole 2.5 hour session identifying these, which would be a crucial stage if trying to design a resilient system to respond to such problems. I'm not sure we'd all agree either...3. Health? Ok I'm very interested in this, and it would be a key sector - but I feel it's slightly odd at a conference like this not to leave more room for discussion of what we understand by resilience and how we think it can be\u00a0 usefully applied as a concept. This level of detail feels like it might suffocate valuable experiences people have had regarding attempting to increase resilience \/ thinking about how it applies to other sectors \/ more widely. The way the proposal above looks, the implication is given that technical knowledge of health is required?4. To me, this whole thing looks more like business continuity planning, rather than resilience, in short.Sorry - that probably sounds mean, but only because I'm stressed ahead of travelling and don't have time to comment properly. Happy to discuss more in person if we get the chance. And will engage enthusiastically whatever...\u00a0","comment_id":"4217","post_id":"1205","user_id":"424","parent_comment_id":"0","creation_date":"Tuesday, June 12, 2012 - 23:29","group_id":"5954"}},{"node":{"title":"A few comments","content":"Don't have time to properly think about this before travelling but a few comments off the top of my head:\u00a01. Financial meltdown? Resilience is about being adaptable and surviving unknown shocks - so wouldn't it be better to think about the resilience of a health system to a variety of shocks not just one?2. What are the problems of financial meltdown - we could easily spend (or waste, depending on your point of view) the whole 2.5 hour session identifying these, which would be a crucial stage if trying to design a resilient system to respond to such problems. I'm not sure we'd all agree either...3. Health? Ok I'm very interested in this, and it would be a key sector - but I feel it's slightly odd at a conference like this not to leave more room for discussion of what we understand by resilience and how we think it can be\u00a0 usefully applied as a concept. This level of detail feels like it might suffocate valuable experiences people have had regarding attempting to increase resilience \/ thinking about how it applies to other sectors \/ more widely. The way the proposal above looks, the implication is given that technical knowledge of health is required?4. To me, this whole thing looks more like business continuity planning, rather than resilience, in short.Sorry - that probably sounds mean, but only because I'm stressed ahead of travelling and don't have time to comment properly. Happy to discuss more in person if we get the chance. And will engage enthusiastically whatever...\u00a0","comment_id":"4217","post_id":"1205","user_id":"424","parent_comment_id":"0","creation_date":"Tuesday, June 12, 2012 - 23:29","group_id":"5954"}},{"node":{"title":"Agreed!","content":"Yeah, I agree. If you read the report, you will find that one of the sub-groups is on prevention. Prevention should be paramount anyway, but we all know it is not, and in truth health care top managers, ministers etc. care more about treatment, large hospitals etc.\u00a0In a financial meltdown scenario, treatment is extremely difficult to deliver, and you just\u00a0havve\u00a0to minimize it by boosting prevention instead, just as you suggest.","comment_id":"4215","post_id":"1205","user_id":"34","parent_comment_id":"3153","creation_date":"Tuesday, June 12, 2012 - 21:34","group_id":"5954"}},{"node":{"title":"Agreed!","content":"Yeah, I agree. If you read the report, you will find that one of the sub-groups is on prevention. Prevention should be paramount anyway, but we all know it is not, and in truth health care top managers, ministers etc. care more about treatment, large hospitals etc.\u00a0In a financial meltdown scenario, treatment is extremely difficult to deliver, and you just\u00a0havve\u00a0to minimize it by boosting prevention instead, just as you suggest.","comment_id":"4215","post_id":"1205","user_id":"34","parent_comment_id":"3153","creation_date":"Tuesday, June 12, 2012 - 21:34","group_id":"5954"}},{"node":{"title":"J. Galtung on Resilience","content":"Very captivating iscussion here.I may be a little of topic here but I'd like to bring out a few ideas i found in J.Galtungs book \"Peace by Peaceful Means\".He says that the word for \"RESILIENCE\" in human and social development is \"SUSTAINABILITY\". A better term is acual \"REPRODUCIBILITY\", capability of reprodcing itself over time by its own resources. This is not only aplicable not only for nature & for societies, but also for the human & the world level.Diverse components interacting simbiotically, here interpreted as not parasitically but as equitably, is the key.I would sugest we sould also focus on the things that keep us healty and in good shape on a dayly basis without the need of medicine. [food, living environment, risk factors, etc.]","comment_id":"4212","post_id":"1205","user_id":"59","parent_comment_id":"0","creation_date":"Tuesday, June 12, 2012 - 21:19","group_id":"5954"}},{"node":{"title":"J. Galtung on Resilience","content":"Very captivating iscussion here.I may be a little of topic here but I'd like to bring out a few ideas i found in J.Galtungs book \"Peace by Peaceful Means\".He says that the word for \"RESILIENCE\" in human and social development is \"SUSTAINABILITY\". A better term is acual \"REPRODUCIBILITY\", capability of reprodcing itself over time by its own resources. This is not only aplicable not only for nature & for societies, but also for the human & the world level.Diverse components interacting simbiotically, here interpreted as not parasitically but as equitably, is the key.I would sugest we sould also focus on the things that keep us healty and in good shape on a dayly basis without the need of medicine. [food, living environment, risk factors, etc.]","comment_id":"4212","post_id":"1205","user_id":"59","parent_comment_id":"0","creation_date":"Tuesday, June 12, 2012 - 21:19","group_id":"5954"}},{"node":{"title":"Too linear!","content":"Lucas, this is great but it has a small problem: it presupposes linearity. That means, if now we consume X mediation per week each, well, that's what we need. This kind of assumption defeats the whole point of a resilience exercise, which is built on the incompatible assumption that X medication is NOT going to be there for you. Linearity assumptions are particularly toxic for the resilience crowd since the Club of Rome predicted that we would run out of several major raw materials in the 1970s.\u00a0So let's look at health, not medication. Instead of sleeping pills, prescribe cutting wood or long-distance running, for example (works a charm for me). Can we do it? You are the doctor.","comment_id":"4209","post_id":"1205","user_id":"34","parent_comment_id":"3146","creation_date":"Tuesday, June 12, 2012 - 21:06","group_id":"5954"}},{"node":{"title":"Too linear!","content":"Lucas, this is great but it has a small problem: it presupposes linearity. That means, if now we consume X mediation per week each, well, that's what we need. This kind of assumption defeats the whole point of a resilience exercise, which is built on the incompatible assumption that X medication is NOT going to be there for you. Linearity assumptions are particularly toxic for the resilience crowd since the Club of Rome predicted that we would run out of several major raw materials in the 1970s.\u00a0So let's look at health, not medication. Instead of sleeping pills, prescribe cutting wood or long-distance running, for example (works a charm for me). Can we do it? You are the doctor.","comment_id":"4209","post_id":"1205","user_id":"34","parent_comment_id":"3146","creation_date":"Tuesday, June 12, 2012 - 21:06","group_id":"5954"}},{"node":{"title":"Medication","content":"\"Synthesisable at the local level when the supply chain is cut\" ...I've asked at my local pharmacy, and a friend who worked upstream in the supply chain. The repeated answer is \"not much\".I asked somebody in my twitter network who is into DIY biotechnology, with a specific question about insulin and he wrote a blogpost saying it wasn't doable right now, and there were things they could work on in the future - apparently it's not simple at all.I guess it depends. Some medications are generics (doable by several makers) and are already doable more or less in a distributed way, say a factory per 40 million people or less. (That would be a way to measure distributedness, no?) But some are really concentrated in a few working hands.Part of the trouble is that medications themselves have long and winding supply chains, which in some circumstances (a bad pandemic) are thought to be susceptible to disruption. Here, we're talking about a handful of countries being affected, with \"maker countries\" probably unaffected, or at least less affected. So the supply would be there, it's just that you can't pay for it because you're suddenly poor. If that's the case, then maybe some important medications should just be paid for with international solidarity money. How much and how that's handled, I don't know.Medications could hypothetically go into a spreadsheet, with how many are affected, how much they are affected, how much medication is needed (people x doses), etc. After appropriate sorting, the spreadsheet would give us 3 categories: \"impossible\" (impossible to do here, so we either import them, or we die), \"possible\" (we need to change how we do things, and we should start looking into \"how\" as soon as we can), and \"done\" (we already make them locally, so they are not really an issue).My guess is most medications go into the \"impossible\", but we'd need to ask real experts (world-wide) about \"possible\" and \"done\".For our exercise, we'd just have to consider the three categories, and asume each is dealt with differently.If there's money or if medications are paid for, transport is not the real problem, because these things are not heavy. Let's go for (I think) high-ish figures, and say 5% of the population need 100 grams of medication a week, that's ... 50000 x 100 \/ 1000 ... 5000 kilograms per million people and per week. A couple of medium-sized trucks per million and per week. http:\/\/en.wikipedia.org\/wiki\/Truck_classificationSo, factors are 1) production, 2) payment and 3) transport. (Maybe there are others, like quality control, local distribution, etc, but we can work from those 3 factors.)Just asking the important questions might take us somewhere - if not now, then later.Just my 2 cents!","comment_id":"4206","post_id":"1205","user_id":"343","parent_comment_id":"3139","creation_date":"Tuesday, June 12, 2012 - 18:21","group_id":"5954"}},{"node":{"title":"Medication","content":"\"Synthesisable at the local level when the supply chain is cut\" ...I've asked at my local pharmacy, and a friend who worked upstream in the supply chain. The repeated answer is \"not much\".I asked somebody in my twitter network who is into DIY biotechnology, with a specific question about insulin and he wrote a blogpost saying it wasn't doable right now, and there were things they could work on in the future - apparently it's not simple at all.I guess it depends. Some medications are generics (doable by several makers) and are already doable more or less in a distributed way, say a factory per 40 million people or less. (That would be a way to measure distributedness, no?) But some are really concentrated in a few working hands.Part of the trouble is that medications themselves have long and winding supply chains, which in some circumstances (a bad pandemic) are thought to be susceptible to disruption. Here, we're talking about a handful of countries being affected, with \"maker countries\" probably unaffected, or at least less affected. So the supply would be there, it's just that you can't pay for it because you're suddenly poor. If that's the case, then maybe some important medications should just be paid for with international solidarity money. How much and how that's handled, I don't know.Medications could hypothetically go into a spreadsheet, with how many are affected, how much they are affected, how much medication is needed (people x doses), etc. After appropriate sorting, the spreadsheet would give us 3 categories: \"impossible\" (impossible to do here, so we either import them, or we die), \"possible\" (we need to change how we do things, and we should start looking into \"how\" as soon as we can), and \"done\" (we already make them locally, so they are not really an issue).My guess is most medications go into the \"impossible\", but we'd need to ask real experts (world-wide) about \"possible\" and \"done\".For our exercise, we'd just have to consider the three categories, and asume each is dealt with differently.If there's money or if medications are paid for, transport is not the real problem, because these things are not heavy. Let's go for (I think) high-ish figures, and say 5% of the population need 100 grams of medication a week, that's ... 50000 x 100 \/ 1000 ... 5000 kilograms per million people and per week. A couple of medium-sized trucks per million and per week. http:\/\/en.wikipedia.org\/wiki\/Truck_classificationSo, factors are 1) production, 2) payment and 3) transport. (Maybe there are others, like quality control, local distribution, etc, but we can work from those 3 factors.)Just asking the important questions might take us somewhere - if not now, then later.Just my 2 cents!","comment_id":"4206","post_id":"1205","user_id":"343","parent_comment_id":"3139","creation_date":"Tuesday, June 12, 2012 - 18:21","group_id":"5954"}},{"node":{"title":"Excellent points","content":"Wow, really good points. The only one on which I feel I have anything to contribute so far is number 4: in my understanding we are speaking of human networks. I would probably try to design p2p diagnosis and trreatment through networks that minimize the reliance on large communication infrastructure - though you can hypothesize that there would be some nonlocal communication, even if lo-tech and with long lags between iterations.","comment_id":"4203","post_id":"1205","user_id":"34","parent_comment_id":"3139","creation_date":"Tuesday, June 12, 2012 - 16:48","group_id":"5954"}},{"node":{"title":"Excellent points","content":"Wow, really good points. The only one on which I feel I have anything to contribute so far is number 4: in my understanding we are speaking of human networks. I would probably try to design p2p diagnosis and trreatment through networks that minimize the reliance on large communication infrastructure - though you can hypothesize that there would be some nonlocal communication, even if lo-tech and with long lags between iterations.","comment_id":"4203","post_id":"1205","user_id":"34","parent_comment_id":"3139","creation_date":"Tuesday, June 12, 2012 - 16:48","group_id":"5954"}},{"node":{"title":"Low cost health systems","content":"I suggest we look at countries with effective health systems but which are \"low cost\" (as a percentage of GDP) as that may give useful insights on how they have managed without having access to certain elements in the international supply chain. Cuba springs to mind as an example.Some questions of interest might include:what is synthesisable at a local level when the supply cain is cut?How energy dependedant are health systems in these contexts, i.e. what happens with no petroleum?All health systems have mechanisms to allocate resources and decide not to save some people's lives - how would that work at a local level?When we speak of networks are we refering to human networks or do we hypothesise scenarios where there is state breakdown but communication infrastructure still functions? In the latter case what does this provide or enable?What lessons can be drawn concerning health systems from past crises e.g. WWII or more recently the change from Yugoslavia (effective health system) to the Serbian\/Bosnian war zones? How did health systems behave in post-Soviet Russia?","comment_id":"4199","post_id":"1205","user_id":"81","parent_comment_id":"0","creation_date":"Tuesday, June 12, 2012 - 16:30","group_id":"5954"}},{"node":{"title":"Low cost health systems","content":"I suggest we look at countries with effective health systems but which are \"low cost\" (as a percentage of GDP) as that may give useful insights on how they have managed without having access to certain elements in the international supply chain. Cuba springs to mind as an example.Some questions of interest might include:what is synthesisable at a local level when the supply cain is cut?How energy dependedant are health systems in these contexts, i.e. what happens with no petroleum?All health systems have mechanisms to allocate resources and decide not to save some people's lives - how would that work at a local level?When we speak of networks are we refering to human networks or do we hypothesise scenarios where there is state breakdown but communication infrastructure still functions? In the latter case what does this provide or enable?What lessons can be drawn concerning health systems from past crises e.g. WWII or more recently the change from Yugoslavia (effective health system) to the Serbian\/Bosnian war zones? How did health systems behave in post-Soviet Russia?","comment_id":"4199","post_id":"1205","user_id":"81","parent_comment_id":"0","creation_date":"Tuesday, June 12, 2012 - 16:30","group_id":"5954"}},{"node":{"title":"I'm in!!!!","content":"Love it. Way to go!","comment_id":"4171","post_id":"1205","user_id":"34","parent_comment_id":"0","creation_date":"Monday, June 11, 2012 - 23:21","group_id":"5954"}},{"node":{"title":"I'm in!!!!","content":"Love it. Way to go!","comment_id":"4171","post_id":"1205","user_id":"34","parent_comment_id":"0","creation_date":"Monday, June 11, 2012 - 23:21","group_id":"5954"}},{"node":{"title":"helho,\nyes i'm still living","content":"helho,yes i'm still living in a small village in the countryside.In my opinion, i think crisis made grow up relations with land...See you Thursday!","comment_id":"4144","post_id":"1160","user_id":"433","parent_comment_id":"3068","creation_date":"Monday, June 11, 2012 - 12:32","group_id":"5954"}},{"node":{"title":"helho,\nyes i'm still living","content":"helho,yes i'm still living in a small village in the countryside.In my opinion, i think crisis made grow up relations with land...See you Thursday!","comment_id":"4144","post_id":"1160","user_id":"433","parent_comment_id":"3068","creation_date":"Monday, June 11, 2012 - 12:32","group_id":"5954"}},{"node":{"title":"Helho Lyne,\nI can't say to","content":"Helho Lyne,I can't say to you the exactly number of hours that my parents or grandparents take to have their own farming.My parents have their jobs and they do these things on free time, weekends...I understand what you say...we grow up with these kind of traditions and maybe in larger cities isn't so easy...but...why not?why can't you have your own job all week and have a peace of land where you can plant?The projects of community farms are growing.answering to your questions...some food we freeze to eat later (peas, beans....) but there are some fruits and vegetables of the season that we eat fresh, for example lettuce, tomatoes, apples and so on.Yes it's possible produce more...if we have land and more time to that...we don't produce for our annual needs but what we produce helps a lot in our \"home economy\".\u00a0","comment_id":"4143","post_id":"1160","user_id":"433","parent_comment_id":"2950","creation_date":"Monday, June 11, 2012 - 12:26","group_id":"5954"}},{"node":{"title":"Helho Lyne,\nI can't say to","content":"Helho Lyne,I can't say to you the exactly number of hours that my parents or grandparents take to have their own farming.My parents have their jobs and they do these things on free time, weekends...I understand what you say...we grow up with these kind of traditions and maybe in larger cities isn't so easy...but...why not?why can't you have your own job all week and have a peace of land where you can plant?The projects of community farms are growing.answering to your questions...some food we freeze to eat later (peas, beans....) but there are some fruits and vegetables of the season that we eat fresh, for example lettuce, tomatoes, apples and so on.Yes it's possible produce more...if we have land and more time to that...we don't produce for our annual needs but what we produce helps a lot in our \"home economy\".\u00a0","comment_id":"4143","post_id":"1160","user_id":"433","parent_comment_id":"2950","creation_date":"Monday, June 11, 2012 - 12:26","group_id":"5954"}},{"node":{"title":"Culture","content":"No, Lucas, technofixes are not enough. The culture behind them, that's an entirely different ballgame. I think it might be a very powerful force!","comment_id":"4129","post_id":"1174","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, June 10, 2012 - 23:54","group_id":"5954"}},{"node":{"title":"Culture","content":"No, Lucas, technofixes are not enough. The culture behind them, that's an entirely different ballgame. I think it might be a very powerful force!","comment_id":"4129","post_id":"1174","user_id":"34","parent_comment_id":"0","creation_date":"Sunday, June 10, 2012 - 23:54","group_id":"5954"}},{"node":{"title":"Same in my memories","content":"I remember when I was little used to stay at grand-grand parents in the countryside, of course those people did not work much with money, they would rather exchange fruit, vegetables, eggs, cheese and other milk products for other goods, just like you say. I'll always remember taste and smells that I've never found afterwards, those of healthy life, in a sort of archaic way. I have a strong feeling some of those traditions aren't lost.\u00a0You might be interested in this discussion on community agriculture as a way to strengthen resilience and increase well being. Also, an important question is: can this collaborative agriculture or growing own food be done in the city? apparently there are initiatives supporting it.. and the UK is in the avantgarde e.g. with the long line for public allotments..\u00a0Thanks Lenia for taking the time to share this, hope I get to read more about your life in the countryside - in that it's not clear if you still live there or not, and if not:\u00a0 do you know if the relations gone unchanged with the crisis or growing hardships, or even with aging ? \u00a0what for the younger generations that at least now live so differently than our grandparents used to live, how do you see them taking care of those lands... ? My parents for example sold land when their grandparents died and there was no one to live and work the land.. they sold it and bought an apartment in the city, which in light of these discussions we have on resilience seems a bit .. I don't know, disapointing?\u00a0And gone are my memories of that lifestyle and communion with nature.\u00a0See you Thursday!","comment_id":"4128","post_id":"1160","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, June 10, 2012 - 23:08","group_id":"5954"}},{"node":{"title":"Same in my memories","content":"I remember when I was little used to stay at grand-grand parents in the countryside, of course those people did not work much with money, they would rather exchange fruit, vegetables, eggs, cheese and other milk products for other goods, just like you say. I'll always remember taste and smells that I've never found afterwards, those of healthy life, in a sort of archaic way. I have a strong feeling some of those traditions aren't lost.\u00a0You might be interested in this discussion on community agriculture as a way to strengthen resilience and increase well being. Also, an important question is: can this collaborative agriculture or growing own food be done in the city? apparently there are initiatives supporting it.. and the UK is in the avantgarde e.g. with the long line for public allotments..\u00a0Thanks Lenia for taking the time to share this, hope I get to read more about your life in the countryside - in that it's not clear if you still live there or not, and if not:\u00a0 do you know if the relations gone unchanged with the crisis or growing hardships, or even with aging ? \u00a0what for the younger generations that at least now live so differently than our grandparents used to live, how do you see them taking care of those lands... ? My parents for example sold land when their grandparents died and there was no one to live and work the land.. they sold it and bought an apartment in the city, which in light of these discussions we have on resilience seems a bit .. I don't know, disapointing?\u00a0And gone are my memories of that lifestyle and communion with nature.\u00a0See you Thursday!","comment_id":"4128","post_id":"1160","user_id":"32","parent_comment_id":"0","creation_date":"Sunday, June 10, 2012 - 23:08","group_id":"5954"}},{"node":{"title":"This guy thinks he can solve it","content":"You should be talking to elf Pavlik. He has this idea that you can actually separate completely economics (the flow of goods and services) from finance - and, true to this principle, he has not touched money in three years! We are trying to get him to Strasbourg - a major headache because building security requires ID, and he refuses to use State ID because he does not believe in States either. Talk about living on the edge...\u00a0Apart from elf's biography, he seems to imply that pulling away from state currency and onto a more mixed form of accounting is per se a major form of redistribution. You have the capacity (for health care), you have the need... how hard can it be? Just supply it, the people you are keeping healthy will find a way to keep you doing your health care. The free rider problem can be kept at bay with variuous accounting techniques.","comment_id":"4105","post_id":"1167","user_id":"34","parent_comment_id":"3042","creation_date":"Sunday, June 10, 2012 - 10:52","group_id":"5954"}},{"node":{"title":"This guy thinks he can solve it","content":"You should be talking to elf Pavlik. He has this idea that you can actually separate completely economics (the flow of goods and services) from finance - and, true to this principle, he has not touched money in three years! We are trying to get him to Strasbourg - a major headache because building security requires ID, and he refuses to use State ID because he does not believe in States either. Talk about living on the edge...\u00a0Apart from elf's biography, he seems to imply that pulling away from state currency and onto a more mixed form of accounting is per se a major form of redistribution. You have the capacity (for health care), you have the need... how hard can it be? Just supply it, the people you are keeping healthy will find a way to keep you doing your health care. The free rider problem can be kept at bay with variuous accounting techniques.","comment_id":"4105","post_id":"1167","user_id":"34","parent_comment_id":"3042","creation_date":"Sunday, June 10, 2012 - 10:52","group_id":"5954"}},{"node":{"title":"Hey! I think you raised some","content":"Hey! I think you raised some really interesting points and I can actually relate to some of them. I have left home which was in Romania to come and study in the UK and as you said most of the times people don't move back to their home towns. Career and independence has also become much more important, particularly for women and it makes it much more difficult for them to settle down. On the other hand the way in which one has been brought up has a major influence on each individual's decisions so for example if one has lived in traditional family sometimes you can't help it but wish for that kind of family yourself. So I think there is, at least for me, a struggle between wanting to embrace as many opportunities as possible offered by the age and the place I'm living in and the desire to follow the example set by my family and achieve that sense of normalcy.","comment_id":"4103","post_id":"984","user_id":"462","parent_comment_id":"0","creation_date":"Sunday, June 10, 2012 - 10:42","group_id":"5954"}},{"node":{"title":"Hey! I think you raised some","content":"Hey! I think you raised some really interesting points and I can actually relate to some of them. I have left home which was in Romania to come and study in the UK and as you said most of the times people don't move back to their home towns. Career and independence has also become much more important, particularly for women and it makes it much more difficult for them to settle down. On the other hand the way in which one has been brought up has a major influence on each individual's decisions so for example if one has lived in traditional family sometimes you can't help it but wish for that kind of family yourself. So I think there is, at least for me, a struggle between wanting to embrace as many opportunities as possible offered by the age and the place I'm living in and the desire to follow the example set by my family and achieve that sense of normalcy.","comment_id":"4103","post_id":"984","user_id":"462","parent_comment_id":"0","creation_date":"Sunday, June 10, 2012 - 10:42","group_id":"5954"}},{"node":{"title":"basic income as innovation policy","content":"Hi Alberto, I really liked your blog (and was glad that you wrote it in both english and italian, because I don't read or write italian). Where basis income is mostly regarded as a distribution method in case of high unemployment rates, it indeed can also be used to set people free in order to make a contribution to social innovation. More in general basic income is a way of distributing resources (human capital) towards things towards those areas where resources are most needed. Because we are failing to do so at the moment I believe. People are being fired at nursing homes etc because of cutting back budgets but the call for health care is the same. We are losing so much energy and time in budgettary and other kind money related issues instead of working on the problem itself.\u00a0","comment_id":"4102","post_id":"1167","user_id":"402","parent_comment_id":"3008","creation_date":"Sunday, June 10, 2012 - 10:41","group_id":"5954"}},{"node":{"title":"basic income as innovation policy","content":"Hi Alberto, I really liked your blog (and was glad that you wrote it in both english and italian, because I don't read or write italian). Where basis income is mostly regarded as a distribution method in case of high unemployment rates, it indeed can also be used to set people free in order to make a contribution to social innovation. More in general basic income is a way of distributing resources (human capital) towards things towards those areas where resources are most needed. Because we are failing to do so at the moment I believe. People are being fired at nursing homes etc because of cutting back budgets but the call for health care is the same. We are losing so much energy and time in budgettary and other kind money related issues instead of working on the problem itself.\u00a0","comment_id":"4102","post_id":"1167","user_id":"402","parent_comment_id":"3008","creation_date":"Sunday, June 10, 2012 - 10:41","group_id":"5954"}},{"node":{"title":"Of course","content":"Hey Carlien, it is always a pleasure to read you :-)Rushkoff's post is a little blunt (for example when he dismisses a centuries-long theoretical discussion on wheter human labor, in the face of rise of automation, can be reallocated to inventing, making and maintaining the machines as \"it never really works that way\"), but the issue is definitely there. Many people think the problem is now income, rather than employment.What I think about this is not particularly important: it s a fascinating topic, but not one that I ever thought I could make a difference, even a small one, about. Since you ask: it seems to me that the numbers add up in the aggregate, i.e. we are now producing enough wealth to be supporting everyone in a dignified lifestyle (by \"everyone\" I mean everyone in the West, conveniently leaving it to the Chinese state to move 300 million people away from subsistence agriculture and illiteracy and over to the cities). But the redistributive plumbing is not there, and I really don't see how we could build it by democratic means.Basic income just makes sense. At a social level, it has zero cost, because people need to eat and take shelter anyway, and I don't notice anybody starving or freezing to death in the Netherlands. Even the poorest eat more or less every day, and they go to sleep somewhere at night. With basic income, the resources to do so would come from the State rather than others (charitable organizations, or families in the case of\u00a0 young people); not much difference, it is the same population supporting the same poors, with the added value of more human dignity and a better sense of security. I have even argued that basic income might be regarded as innovation policy: promise a young person her bills will be paid for a year or two, and that person will (with some probability) use the time to build something of value: voluntary work, a company, a work of art. No brainer, right? Wrong, apparently.It would be incredibly important to get beyond the job paradigm. Realistically, however, I don't see it happening any time soon - unless by the semi-autonomous nomadic tribes imagined by Bruce Sterling in his visionary book Distraction (recommended). So, I am not fighting this particular battle. Did I make the wrong call?","comment_id":"4076","post_id":"1167","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, June 9, 2012 - 10:21","group_id":"5954"}},{"node":{"title":"Of course","content":"Hey Carlien, it is always a pleasure to read you :-)Rushkoff's post is a little blunt (for example when he dismisses a centuries-long theoretical discussion on wheter human labor, in the face of rise of automation, can be reallocated to inventing, making and maintaining the machines as \"it never really works that way\"), but the issue is definitely there. Many people think the problem is now income, rather than employment.What I think about this is not particularly important: it s a fascinating topic, but not one that I ever thought I could make a difference, even a small one, about. Since you ask: it seems to me that the numbers add up in the aggregate, i.e. we are now producing enough wealth to be supporting everyone in a dignified lifestyle (by \"everyone\" I mean everyone in the West, conveniently leaving it to the Chinese state to move 300 million people away from subsistence agriculture and illiteracy and over to the cities). But the redistributive plumbing is not there, and I really don't see how we could build it by democratic means.Basic income just makes sense. At a social level, it has zero cost, because people need to eat and take shelter anyway, and I don't notice anybody starving or freezing to death in the Netherlands. Even the poorest eat more or less every day, and they go to sleep somewhere at night. With basic income, the resources to do so would come from the State rather than others (charitable organizations, or families in the case of\u00a0 young people); not much difference, it is the same population supporting the same poors, with the added value of more human dignity and a better sense of security. I have even argued that basic income might be regarded as innovation policy: promise a young person her bills will be paid for a year or two, and that person will (with some probability) use the time to build something of value: voluntary work, a company, a work of art. No brainer, right? Wrong, apparently.It would be incredibly important to get beyond the job paradigm. Realistically, however, I don't see it happening any time soon - unless by the semi-autonomous nomadic tribes imagined by Bruce Sterling in his visionary book Distraction (recommended). So, I am not fighting this particular battle. Did I make the wrong call?","comment_id":"4076","post_id":"1167","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, June 9, 2012 - 10:21","group_id":"5954"}},{"node":{"title":"How many hours per week do you evaluate it requires? ","content":"In the countryside, the tradition of food production does not seem to have been lost. You seem to indicate that it is still very present in your father's mind. Multigenerational families or close relationships with family members also must help at keeping food production traditions.In the larger cities, the family and neighbors ties are not as strong.Do you participate in food production yourself? How many hours per week do you evaluate it requires? For those not familiar with food production, do you think that it is complicated, a difficult thing to learn? Do you make jars or transform some of the production to be eaten months later, or is it only to be eaten fresh?How much food do you produce, compared to your total annual needs? Would it be possible to produce more, and what would it require?","comment_id":"4027","post_id":"1160","user_id":"1743","parent_comment_id":"0","creation_date":"Friday, June 8, 2012 - 05:16","group_id":"5954"}},{"node":{"title":"How many hours per week do you evaluate it requires? ","content":"In the countryside, the tradition of food production does not seem to have been lost. You seem to indicate that it is still very present in your father's mind. Multigenerational families or close relationships with family members also must help at keeping food production traditions.In the larger cities, the family and neighbors ties are not as strong.Do you participate in food production yourself? How many hours per week do you evaluate it requires? For those not familiar with food production, do you think that it is complicated, a difficult thing to learn? Do you make jars or transform some of the production to be eaten months later, or is it only to be eaten fresh?How much food do you produce, compared to your total annual needs? Would it be possible to produce more, and what would it require?","comment_id":"4027","post_id":"1160","user_id":"1743","parent_comment_id":"0","creation_date":"Friday, June 8, 2012 - 05:16","group_id":"5954"}},{"node":{"title":"enrolled","content":"Hi, I've enrolled on the Resilience theme (wanted to look at the Commons stuff too, but felt the pull of both my academic work and my fears for the future!). See you on Friday 15th, if not before...","comment_id":"4001","post_id":"1158","user_id":"424","parent_comment_id":"2922","creation_date":"Thursday, June 7, 2012 - 14:59","group_id":"5954"}},{"node":{"title":"enrolled","content":"Hi, I've enrolled on the Resilience theme (wanted to look at the Commons stuff too, but felt the pull of both my academic work and my fears for the future!). See you on Friday 15th, if not before...","comment_id":"4001","post_id":"1158","user_id":"424","parent_comment_id":"2922","creation_date":"Thursday, June 7, 2012 - 14:59","group_id":"5954"}},{"node":{"title":"Can we enroll you?","content":"Hi James, this is really exciting stuff. It sounds like you people are making a stab to rewiring your local community for a more resilient economy.Can I recommend you join Lucas, Vinay, Simone, myself and others in the Resilience breakout session? Join the team, there is a discussion going on as to how to make the most of it.","comment_id":"4000","post_id":"1158","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, June 7, 2012 - 14:17","group_id":"5954"}},{"node":{"title":"Can we enroll you?","content":"Hi James, this is really exciting stuff. It sounds like you people are making a stab to rewiring your local community for a more resilient economy.Can I recommend you join Lucas, Vinay, Simone, myself and others in the Resilience breakout session? Join the team, there is a discussion going on as to how to make the most of it.","comment_id":"4000","post_id":"1158","user_id":"34","parent_comment_id":"0","creation_date":"Thursday, June 7, 2012 - 14:17","group_id":"5954"}},{"node":{"title":"Hey Alberto, it's a fantastic","content":"Hey Alberto, it's a fantastic news. Just what I thought it! :DFor me it should be an honor to stay with you in this project!Thanks very muchCiao","comment_id":"3941","post_id":"1147","user_id":"410","parent_comment_id":"2836","creation_date":"Tuesday, June 5, 2012 - 09:47","group_id":"5954"}},{"node":{"title":"Hey Alberto, it's a fantastic","content":"Hey Alberto, it's a fantastic news. Just what I thought it! :DFor me it should be an honor to stay with you in this project!Thanks very muchCiao","comment_id":"3941","post_id":"1147","user_id":"410","parent_comment_id":"2836","creation_date":"Tuesday, June 5, 2012 - 09:47","group_id":"5954"}},{"node":{"title":"Doing it (-ish) just now","content":"Emiliano, breaking news: Wikitalia, an NGO I am part of, is deploying a small suite to enable coordination around catastrophes and reconstruction. It is shaping up as we go, and if you want to be involved I'll fetch a link for you. For now it's been only a volley of emails, but I think in a matter of days there will be a mailing list or something. Hang in there. :-)","comment_id":"3935","post_id":"1147","user_id":"34","parent_comment_id":"0","creation_date":"Monday, June 4, 2012 - 18:59","group_id":"5954"}},{"node":{"title":"Doing it (-ish) just now","content":"Emiliano, breaking news: Wikitalia, an NGO I am part of, is deploying a small suite to enable coordination around catastrophes and reconstruction. It is shaping up as we go, and if you want to be involved I'll fetch a link for you. For now it's been only a volley of emails, but I think in a matter of days there will be a mailing list or something. Hang in there. :-)","comment_id":"3935","post_id":"1147","user_id":"34","parent_comment_id":"0","creation_date":"Monday, June 4, 2012 - 18:59","group_id":"5954"}},{"node":{"title":"build on top of other people's work","content":"http:\/\/crisiscommons.org\/http:\/\/en.wikipedia.org\/wiki\/Crisis_camphttps:\/\/twitter.com\/#!\/CrisisCampMay I suggest something? You could try and get in touch with local people who are into free software and flexible communications: linux user groups, wireless experts, hamradio operators, etc. Ask people if there are other invitations to make.\u00a0Tell them you have only partial answers (we all have only partial answers) but also a few important questions. Link the global with the local and create the space for local action.It _may_ work. :-)I plan to go to the unconference for many reasons. One is I want to see how it works in real life. I think you could perhaps gather a group of five to five-thousand people (kidding, 5-20 is good enough) to talk without an agenda, about how to improve resilience in this and other regards.If you're coming to the conference, it will be great to meet. If not, please consider looking at the resilience session.\u00a0http:\/\/edgeryders.ppa.coe.int\/resilience-sessionTO MODERATORS: Can someone please tag this whole conversation as \"resilience\"? This is not \"help build the June conference\"! In another iteration of the software, maybe we should be allowed to \"tag\" or at the very least \"suggest tag\" for posts.","comment_id":"3934","post_id":"1147","user_id":"343","parent_comment_id":"0","creation_date":"Monday, June 4, 2012 - 17:57","group_id":"5954"}},{"node":{"title":"build on top of other people's work","content":"http:\/\/crisiscommons.org\/http:\/\/en.wikipedia.org\/wiki\/Crisis_camphttps:\/\/twitter.com\/#!\/CrisisCampMay I suggest something? You could try and get in touch with local people who are into free software and flexible communications: linux user groups, wireless experts, hamradio operators, etc. Ask people if there are other invitations to make.\u00a0Tell them you have only partial answers (we all have only partial answers) but also a few important questions. Link the global with the local and create the space for local action.It _may_ work. :-)I plan to go to the unconference for many reasons. One is I want to see how it works in real life. I think you could perhaps gather a group of five to five-thousand people (kidding, 5-20 is good enough) to talk without an agenda, about how to improve resilience in this and other regards.If you're coming to the conference, it will be great to meet. If not, please consider looking at the resilience session.\u00a0http:\/\/edgeryders.ppa.coe.int\/resilience-sessionTO MODERATORS: Can someone please tag this whole conversation as \"resilience\"? This is not \"help build the June conference\"! In another iteration of the software, maybe we should be allowed to \"tag\" or at the very least \"suggest tag\" for posts.","comment_id":"3934","post_id":"1147","user_id":"343","parent_comment_id":"0","creation_date":"Monday, June 4, 2012 - 17:57","group_id":"5954"}},{"node":{"title":"Hi Lyne and thanks for your","content":"Hi Lyne and thanks for your contribute and this important news about the Declaration. I don't knew it.So however I would to think at new possibility to improve the possibility of the poor people in those terrible moments. During the last earthquake I saw the cofusion, panic, fear in the face of the every person and this face worse hour after hour because they haven't anyone with speak and ask help until arrive the Protection Civil, the firefighters and when the municipalities can organized a little bit better.But also when the autorithy are a litlle bit orgnized there is a problem of congestion of the request of help and informations. In the emergency fields there are sites of the Protezione Civile and municipalities but they haven't the right istruments to work wery well and answer at the problems of the peoople. Often there are this confusion that the autorithy don't understand the priority and they have serious problems.So for this reason that I think to buid a web-site that can contain all the right instrument to set in this needs.Therefore to have a right instruments for the autorthy and also a emergency field with monitor, tablet and personal computer with the App of the emergency to write in the emergency site all the problems, so the autorithy can decide the priorithy and have all the situation in one DB, and also to have a site for the citizens where read all the information and comunication. I think that we schould work to do a procedure and strategy to regularize the situation after the first moment of the natural disasters and also for a right management of the tile of the emergency.I hope that it's all clear!\u00a0","comment_id":"3917","post_id":"1147","user_id":"410","parent_comment_id":"2804","creation_date":"Monday, June 4, 2012 - 11:44","group_id":"5954"}},{"node":{"title":"Hi Lyne and thanks for your","content":"Hi Lyne and thanks for your contribute and this important news about the Declaration. I don't knew it.So however I would to think at new possibility to improve the possibility of the poor people in those terrible moments. During the last earthquake I saw the cofusion, panic, fear in the face of the every person and this face worse hour after hour because they haven't anyone with speak and ask help until arrive the Protection Civil, the firefighters and when the municipalities can organized a little bit better.But also when the autorithy are a litlle bit orgnized there is a problem of congestion of the request of help and informations. In the emergency fields there are sites of the Protezione Civile and municipalities but they haven't the right istruments to work wery well and answer at the problems of the peoople. Often there are this confusion that the autorithy don't understand the priority and they have serious problems.So for this reason that I think to buid a web-site that can contain all the right instrument to set in this needs.Therefore to have a right instruments for the autorthy and also a emergency field with monitor, tablet and personal computer with the App of the emergency to write in the emergency site all the problems, so the autorithy can decide the priorithy and have all the situation in one DB, and also to have a site for the citizens where read all the information and comunication. I think that we schould work to do a procedure and strategy to regularize the situation after the first moment of the natural disasters and also for a right management of the tile of the emergency.I hope that it's all clear!\u00a0","comment_id":"3917","post_id":"1147","user_id":"410","parent_comment_id":"2804","creation_date":"Monday, June 4, 2012 - 11:44","group_id":"5954"}},{"node":{"title":"Would U consider extending your tool to other disasters? ","content":"Creating networks is one of several strategies for increasing resilience to earthquakes.Networks need to built at all scales. The presence of support networks helps keep the issue of safety current. Networks ensure that people do not feel alone. Networks help disseminate information and promote learning as well as information sharing. Moreover, networks create a benign form of disaster subculture. Therefore, networks contribute to social solidarity.According to the Geocataclysm Declaration of September 2011, \"Istanbul Declaration on natural cataclysms\", \"Large-scale negative effect of natural disasters in recent years has shown that humanity is not prepared to enter the era of global natural cataclysms, either technologically, economically, legally, socially or psychologically.\"They proposed the \"creation of a unified international educational system for preparing the world\u2019s population to act before, during and after natural disasters, with extensive use of the Internet and other information technologies.\"Would you like to consider extending your tool to other types of natural disasters?These consist of observed disasters throughout the Earth including its core, mantle, lithosphere, hydrosphere, atmosphere, ionosphere and magnetosphere. Avalanches, blizzards, communicable diseases, cyclones, hurricanes, earthquakes, famines, floods and landslides, heatwaves, lightning strikes, volcanic eruptions, storms, tornadoes, tsunamies, wildfires and busfires.I honestly do not know what happened to this declaration, if any international organisation has picked it up and is following its recommendations. If you find out, let me know: I am interested in learning more about this Declaration and the reactions of the world leaders, what the countries around the world are doing to face the increasing number of natural disasters.It's good to know that one's project is aligned with the recommendations of the best leading world scientists,\u00a0isn't it?!","comment_id":"3909","post_id":"1147","user_id":"1743","parent_comment_id":"0","creation_date":"Monday, June 4, 2012 - 04:29","group_id":"5954"}},{"node":{"title":"Would U consider extending your tool to other disasters? ","content":"Creating networks is one of several strategies for increasing resilience to earthquakes.Networks need to built at all scales. The presence of support networks helps keep the issue of safety current. Networks ensure that people do not feel alone. Networks help disseminate information and promote learning as well as information sharing. Moreover, networks create a benign form of disaster subculture. Therefore, networks contribute to social solidarity.According to the Geocataclysm Declaration of September 2011, \"Istanbul Declaration on natural cataclysms\", \"Large-scale negative effect of natural disasters in recent years has shown that humanity is not prepared to enter the era of global natural cataclysms, either technologically, economically, legally, socially or psychologically.\"They proposed the \"creation of a unified international educational system for preparing the world\u2019s population to act before, during and after natural disasters, with extensive use of the Internet and other information technologies.\"Would you like to consider extending your tool to other types of natural disasters?These consist of observed disasters throughout the Earth including its core, mantle, lithosphere, hydrosphere, atmosphere, ionosphere and magnetosphere. Avalanches, blizzards, communicable diseases, cyclones, hurricanes, earthquakes, famines, floods and landslides, heatwaves, lightning strikes, volcanic eruptions, storms, tornadoes, tsunamies, wildfires and busfires.I honestly do not know what happened to this declaration, if any international organisation has picked it up and is following its recommendations. If you find out, let me know: I am interested in learning more about this Declaration and the reactions of the world leaders, what the countries around the world are doing to face the increasing number of natural disasters.It's good to know that one's project is aligned with the recommendations of the best leading world scientists,\u00a0isn't it?!","comment_id":"3909","post_id":"1147","user_id":"1743","parent_comment_id":"0","creation_date":"Monday, June 4, 2012 - 04:29","group_id":"5954"}},{"node":{"title":"Every round has been extremely different ","content":"\u00a0Every round has been extremely different from one another which means that the players have the power to transform the game themselves and also this has given us the necessary feedback to evolve it.The two main points that I would like to highlight areFirstly, the more specific the role of the players (ex. Owner of the Chinese restaurant at the corner of street A \u00a0e.t.c) the better they perform in negotiating with the other players.Secondly, there is always the danger that the players will resort in reproducing the same social stereotypes and stop thinking critically and innovative. It is important that the players are given information and resources prior to the game in order to have deeper understanding of the issues and parameters of the area. \u00a0","comment_id":"3601","post_id":"1102","user_id":"2249","parent_comment_id":"2461","creation_date":"Monday, May 21, 2012 - 20:08","group_id":"5954"}},{"node":{"title":"Every round has been extremely different ","content":"\u00a0Every round has been extremely different from one another which means that the players have the power to transform the game themselves and also this has given us the necessary feedback to evolve it.The two main points that I would like to highlight areFirstly, the more specific the role of the players (ex. Owner of the Chinese restaurant at the corner of street A \u00a0e.t.c) the better they perform in negotiating with the other players.Secondly, there is always the danger that the players will resort in reproducing the same social stereotypes and stop thinking critically and innovative. It is important that the players are given information and resources prior to the game in order to have deeper understanding of the issues and parameters of the area. \u00a0","comment_id":"3601","post_id":"1102","user_id":"2249","parent_comment_id":"2461","creation_date":"Monday, May 21, 2012 - 20:08","group_id":"5954"}},{"node":{"title":"Wowowow","content":"this sounds really interesting! I'd love to play it!! How have the first rounds of the game gone, what if any insights have participants gained through them...and do any of them map onto the discussions we have been having on Edgeryders? I wonder whether some of the insights gained might be of use in putting Vinay's post in perspective, or even challenging it: http:\/\/edgeryders.ppa.coe.int\/practical-resilience\/mission_case\/europe-risk-war-what-should-we-doWould be super interesting to know more about the actual conflicts and which solutions the winning groups came up with !","comment_id":"3599","post_id":"1102","user_id":"45","parent_comment_id":"0","creation_date":"Monday, May 21, 2012 - 19:31","group_id":"5954"}},{"node":{"title":"Wowowow","content":"this sounds really interesting! I'd love to play it!! How have the first rounds of the game gone, what if any insights have participants gained through them...and do any of them map onto the discussions we have been having on Edgeryders? I wonder whether some of the insights gained might be of use in putting Vinay's post in perspective, or even challenging it: http:\/\/edgeryders.ppa.coe.int\/practical-resilience\/mission_case\/europe-risk-war-what-should-we-doWould be super interesting to know more about the actual conflicts and which solutions the winning groups came up with !","comment_id":"3599","post_id":"1102","user_id":"45","parent_comment_id":"0","creation_date":"Monday, May 21, 2012 - 19:31","group_id":"5954"}},{"node":{"title":"Perfect!! I m coming also on","content":"Perfect!! I m coming also on the 13th for both conference and unconference!!\u00a0Can't wait to go there and meet all these interesting people and make some magic ***","comment_id":"3524","post_id":"1062","user_id":"2122","parent_comment_id":"2339","creation_date":"Thursday, May 17, 2012 - 16:02","group_id":"5954"}},{"node":{"title":"Perfect!! I m coming also on","content":"Perfect!! I m coming also on the 13th for both conference and unconference!!\u00a0Can't wait to go there and meet all these interesting people and make some magic ***","comment_id":"3524","post_id":"1062","user_id":"2122","parent_comment_id":"2339","creation_date":"Thursday, May 17, 2012 - 16:02","group_id":"5954"}},{"node":{"title":"Ciao Luna,\nI'll be at both","content":"Ciao Luna,I'll be at both the conference and the unconference in june (I'm coming on the 13th what about you?).And I'll be happy to meet you, let's stay in touch.Right now Day 1 (the 14th Meet the policy maker) is looking quite interesting, I cant wait to be a part of that.And I have a feeling that the uncoference will be just as good and intense as the official conf.--Medhin \u262e","comment_id":"3482","post_id":"1062","user_id":"441","parent_comment_id":"2199","creation_date":"Tuesday, May 15, 2012 - 14:34","group_id":"5954"}},{"node":{"title":"Ciao Luna,\nI'll be at both","content":"Ciao Luna,I'll be at both the conference and the unconference in june (I'm coming on the 13th what about you?).And I'll be happy to meet you, let's stay in touch.Right now Day 1 (the 14th Meet the policy maker) is looking quite interesting, I cant wait to be a part of that.And I have a feeling that the uncoference will be just as good and intense as the official conf.--Medhin \u262e","comment_id":"3482","post_id":"1062","user_id":"441","parent_comment_id":"2199","creation_date":"Tuesday, May 15, 2012 - 14:34","group_id":"5954"}},{"node":{"title":"No lack of candidates","content":"Washington consensus economics?Weberian rationality?Party politics? Whoops... I forget you are in a party - albeit a pretty strange one :-)","comment_id":"3429","post_id":"1056","user_id":"34","parent_comment_id":"2277","creation_date":"Saturday, May 12, 2012 - 20:35","group_id":"5954"}},{"node":{"title":"No lack of candidates","content":"Washington consensus economics?Weberian rationality?Party politics? Whoops... I forget you are in a party - albeit a pretty strange one :-)","comment_id":"3429","post_id":"1056","user_id":"34","parent_comment_id":"2277","creation_date":"Saturday, May 12, 2012 - 20:35","group_id":"5954"}},{"node":{"title":"Interesting times ahead","content":"Fascinating story, indeed. I wonder what of our modern orthodoxies will look as strange as religious law looks to us now, given our history in Europe of ever-increasing freedom from the whims of the organized church and discinplinary State...We forget, sometimes, many of us at least, how repressive the regimes of the rest of the world are, and how damn narrow most traditional cultures are when you actually look at their practicies in detail.What do you think is the next orthodoxy we will choose to forget :-) ?","comment_id":"3423","post_id":"1056","user_id":"342","parent_comment_id":"0","creation_date":"Saturday, May 12, 2012 - 19:04","group_id":"5954"}},{"node":{"title":"Interesting times ahead","content":"Fascinating story, indeed. I wonder what of our modern orthodoxies will look as strange as religious law looks to us now, given our history in Europe of ever-increasing freedom from the whims of the organized church and discinplinary State...We forget, sometimes, many of us at least, how repressive the regimes of the rest of the world are, and how damn narrow most traditional cultures are when you actually look at their practicies in detail.What do you think is the next orthodoxy we will choose to forget :-) ?","comment_id":"3423","post_id":"1056","user_id":"342","parent_comment_id":"0","creation_date":"Saturday, May 12, 2012 - 19:04","group_id":"5954"}},{"node":{"title":"good beginning for plural society!","content":"Really interesting! it's so important that boys and girls of second generation become the real protagonist of their own life and issues that they have to face with! I hope that could be a good example also for immigrants and for other people..i can say it as italian citizen, and also as activist in a group that is trying to work in the matter of migration, racism and society... and i can say that as educator, this is my job...in this year with my group I've carried out some workshops in the secondary school dealing with issues as prejudice, discrimination, migration, ecc.. and i've known many people that are part of second generation... i'm thinking that youngsters are the most important part of the society and they can really teach us how to live together.Your exeperience is really precious to reflect together about a plural society, that is the best thing i hope for the \u00a0place where I live.. I hope we will have the chance to keep in contact!","comment_id":"3408","post_id":"1062","user_id":"2493","parent_comment_id":"0","creation_date":"Saturday, May 12, 2012 - 13:35","group_id":"5954"}},{"node":{"title":"good beginning for plural society!","content":"Really interesting! it's so important that boys and girls of second generation become the real protagonist of their own life and issues that they have to face with! I hope that could be a good example also for immigrants and for other people..i can say it as italian citizen, and also as activist in a group that is trying to work in the matter of migration, racism and society... and i can say that as educator, this is my job...in this year with my group I've carried out some workshops in the secondary school dealing with issues as prejudice, discrimination, migration, ecc.. and i've known many people that are part of second generation... i'm thinking that youngsters are the most important part of the society and they can really teach us how to live together.Your exeperience is really precious to reflect together about a plural society, that is the best thing i hope for the \u00a0place where I live.. I hope we will have the chance to keep in contact!","comment_id":"3408","post_id":"1062","user_id":"2493","parent_comment_id":"0","creation_date":"Saturday, May 12, 2012 - 13:35","group_id":"5954"}},{"node":{"title":"Oh don't get me started on religion!","content":"Oh religion - I have many views on this subject, and not all of them good!! I don't understand how religion should be able to speak on family matters when religion hasn't really moved on with modern times - particularly in the UK, but I am sure the same could be said of many countries. There are some forward thinking sections, but overall you only ever hear of the sides that just hold back people from growing and loving in way that's right for them, which tars those who are doing good with the same brush.Not going to go in to this further, but might just have to blog about it (If I'm brave enough!)","comment_id":"3394","post_id":"984","user_id":"444","parent_comment_id":"2194","creation_date":"Friday, May 11, 2012 - 13:18","group_id":"5954"}},{"node":{"title":"Oh don't get me started on religion!","content":"Oh religion - I have many views on this subject, and not all of them good!! I don't understand how religion should be able to speak on family matters when religion hasn't really moved on with modern times - particularly in the UK, but I am sure the same could be said of many countries. There are some forward thinking sections, but overall you only ever hear of the sides that just hold back people from growing and loving in way that's right for them, which tars those who are doing good with the same brush.Not going to go in to this further, but might just have to blog about it (If I'm brave enough!)","comment_id":"3394","post_id":"984","user_id":"444","parent_comment_id":"2194","creation_date":"Friday, May 11, 2012 - 13:18","group_id":"5954"}},{"node":{"title":"Thanks for the details! I","content":"Thanks for the details! I subscribed on the facebook group and I checked the website .. it seems very interesting initiative and I think Greece should be paradigmatised by it.. I ll do my best towards this way :)\u00a0By the way are you coming to the conference in June? Have you checked its agenda? What do you think? It would be nice to meet you in person\u00a0xx","comment_id":"3353","post_id":"1062","user_id":"2122","parent_comment_id":"2173","creation_date":"Thursday, May 10, 2012 - 15:00","group_id":"5954"}},{"node":{"title":"Thanks for the details! I","content":"Thanks for the details! I subscribed on the facebook group and I checked the website .. it seems very interesting initiative and I think Greece should be paradigmatised by it.. I ll do my best towards this way :)\u00a0By the way are you coming to the conference in June? Have you checked its agenda? What do you think? It would be nice to meet you in person\u00a0xx","comment_id":"3353","post_id":"1062","user_id":"2122","parent_comment_id":"2173","creation_date":"Thursday, May 10, 2012 - 15:00","group_id":"5954"}},{"node":{"title":"Alternative family","content":"Hey Missy!\u00a0Really cool post, enjoyed it a lot! I have a lot of questions and still don't knwo how to put them :) Just wanted to leave a word of appreciation and say that all type of \"alternatives\" in our world will be possible when church will slow down a bit...and I don't see that hapenning soon...","comment_id":"3350","post_id":"984","user_id":"434","parent_comment_id":"0","creation_date":"Thursday, May 10, 2012 - 14:22","group_id":"5954"}},{"node":{"title":"Alternative family","content":"Hey Missy!\u00a0Really cool post, enjoyed it a lot! I have a lot of questions and still don't knwo how to put them :) Just wanted to leave a word of appreciation and say that all type of \"alternatives\" in our world will be possible when church will slow down a bit...and I don't see that hapenning soon...","comment_id":"3350","post_id":"984","user_id":"434","parent_comment_id":"0","creation_date":"Thursday, May 10, 2012 - 14:22","group_id":"5954"}},{"node":{"title":"Ciao Luna (nice name),\nGreece","content":"Ciao Luna (nice name),Greece form what I know is the only Eu with a situation similar to the italian one regarding citizeship laws.Most Eu countries have a softened version of \"Jus Soli\", and by softened I mean that there is a condition to that.The condition being, that you already have a parent living regularly\/legally on italian soil for a few years at the time of your birth.That's the rule in most european countries anyway (with differencies of course).Rete G2 doesn't have any kind of membership card.You can be a part of the larger network by actively become part of the discussion, you can do that by following and adding to the conversation\u00a0 here http:\/\/www.secondegenerazioni.it\/ and here http:\/\/www.secondegenerazioni.it\/forum\/index.phpor even on FB https:\/\/www.facebook.com\/groups\/41820491538\/Then there is a smaller group of people (actual G2 members) who are the head and arms of the organization.A network within the network sort of.We do cooperate with different groups and organization in Italy, but not much yet outside of it.We've been invited to conventions and interviews by the American Embassy in Rome, foreign radio stations (Germany), and we've been asked for the content of the various material we produce from teachers from the US and other countries.Especially our radio program OndeG2.Regarding Liberaparola, that's a good service they're providing.I personally know many 2d generation people who do the same, since they usually speak two or more languages.By the way, my last vacation as a \"foreigner in my own country\" was at 17 in GREECE (beautiful).I almost missed it because I had an ethiopian passport at the tiime.I won't tell HOW I didn't end up missing my trip.. but it was epic!\u00a0","comment_id":"3329","post_id":"1062","user_id":"441","parent_comment_id":"2150","creation_date":"Thursday, May 10, 2012 - 04:06","group_id":"5954"}},{"node":{"title":"Ciao Luna (nice name),\nGreece","content":"Ciao Luna (nice name),Greece form what I know is the only Eu with a situation similar to the italian one regarding citizeship laws.Most Eu countries have a softened version of \"Jus Soli\", and by softened I mean that there is a condition to that.The condition being, that you already have a parent living regularly\/legally on italian soil for a few years at the time of your birth.That's the rule in most european countries anyway (with differencies of course).Rete G2 doesn't have any kind of membership card.You can be a part of the larger network by actively become part of the discussion, you can do that by following and adding to the conversation\u00a0 here http:\/\/www.secondegenerazioni.it\/ and here http:\/\/www.secondegenerazioni.it\/forum\/index.phpor even on FB https:\/\/www.facebook.com\/groups\/41820491538\/Then there is a smaller group of people (actual G2 members) who are the head and arms of the organization.A network within the network sort of.We do cooperate with different groups and organization in Italy, but not much yet outside of it.We've been invited to conventions and interviews by the American Embassy in Rome, foreign radio stations (Germany), and we've been asked for the content of the various material we produce from teachers from the US and other countries.Especially our radio program OndeG2.Regarding Liberaparola, that's a good service they're providing.I personally know many 2d generation people who do the same, since they usually speak two or more languages.By the way, my last vacation as a \"foreigner in my own country\" was at 17 in GREECE (beautiful).I almost missed it because I had an ethiopian passport at the tiime.I won't tell HOW I didn't end up missing my trip.. but it was epic!\u00a0","comment_id":"3329","post_id":"1062","user_id":"441","parent_comment_id":"2150","creation_date":"Thursday, May 10, 2012 - 04:06","group_id":"5954"}},{"node":{"title":"Hey Vinay,\nlet me explain.\nUp","content":"Hey Vinay,let me explain.Up until the second world war, Italy was mostly a country of emigration.With italians migrating to various parts of the world (Argentina, Usa, Australia).Only in the last few decades we became a country of immigration, with people from extra european countries coming to Italy.The law in force now is \"legge 91 del 1992\".It enforces the Bloodline\/right of blood, or jus sanguinis, meaning you obtain citizenship as a result of the nationality of one parent or of another, more distant ancestors.As opposed to Birthplace or jus soli, meaning the fact of being born in a territory should be enough to give you citizeship rights.http:\/\/www.interno.it\/mininterno\/export\/sites\/default\/it\/sezioni\/servizi\/legislazione\/cittadinanza\/legislazione_30.htmSo the law as it is now is designed basicly to preserve the citizenship of those italians who migrated to other countries, so even generations later, their children could still be citizens, even if they were born and raised abroad and they never been in Italy.That makes sense, and that's not the problem anyway.The issue is, that now all those children of those extra-european immigrants, are left out of the equation.And as a result there are \"italians living with visa permits in Italy\".To answer you better Vinay let me give you an example, mine.I was born in Milano Italy, from east african parents.So since I was born on italian soil and my father was a foreigner but already a resident on a regular visa, when I turned 18 I had the chance to ask for my italian citizeship.I got lucky and I got it, but let me say, you only have a window of time of one year to ask for it. If you pass 19 then you'll follow the channells reserved for foreigners.I also had to demonstrate to have remained in the country for those first 18 years of my life.I'm only an example but that's obviously the rule for everyone.Changes we would like to see (on a political level):G2 is working toward a modification of\u00a0 the current law, to make it more inclusive towards sons and daughters of immigrants.(Ius soli, with )Also we include in the discussion people who were not born in Italy, but came early on in life as children with their families.For them we ask to have a privileged route to get citizenship rights (they don't even get that chance I had at 18 to ask for my right, they're authomaticly excluded).If you want me to tell you more about the kind of work we do, I will.Medhin, who actually got an american visa because of her now italian passport (It only took me 18 years!)\u00a0\u00a0\u00a0l\u00a0\u00a0\u00a0\u00a0","comment_id":"3328","post_id":"1062","user_id":"441","parent_comment_id":"2140","creation_date":"Thursday, May 10, 2012 - 03:22","group_id":"5954"}},{"node":{"title":"Hey Vinay,\nlet me explain.\nUp","content":"Hey Vinay,let me explain.Up until the second world war, Italy was mostly a country of emigration.With italians migrating to various parts of the world (Argentina, Usa, Australia).Only in the last few decades we became a country of immigration, with people from extra european countries coming to Italy.The law in force now is \"legge 91 del 1992\".It enforces the Bloodline\/right of blood, or jus sanguinis, meaning you obtain citizenship as a result of the nationality of one parent or of another, more distant ancestors.As opposed to Birthplace or jus soli, meaning the fact of being born in a territory should be enough to give you citizeship rights.http:\/\/www.interno.it\/mininterno\/export\/sites\/default\/it\/sezioni\/servizi\/legislazione\/cittadinanza\/legislazione_30.htmSo the law as it is now is designed basicly to preserve the citizenship of those italians who migrated to other countries, so even generations later, their children could still be citizens, even if they were born and raised abroad and they never been in Italy.That makes sense, and that's not the problem anyway.The issue is, that now all those children of those extra-european immigrants, are left out of the equation.And as a result there are \"italians living with visa permits in Italy\".To answer you better Vinay let me give you an example, mine.I was born in Milano Italy, from east african parents.So since I was born on italian soil and my father was a foreigner but already a resident on a regular visa, when I turned 18 I had the chance to ask for my italian citizeship.I got lucky and I got it, but let me say, you only have a window of time of one year to ask for it. If you pass 19 then you'll follow the channells reserved for foreigners.I also had to demonstrate to have remained in the country for those first 18 years of my life.I'm only an example but that's obviously the rule for everyone.Changes we would like to see (on a political level):G2 is working toward a modification of\u00a0 the current law, to make it more inclusive towards sons and daughters of immigrants.(Ius soli, with )Also we include in the discussion people who were not born in Italy, but came early on in life as children with their families.For them we ask to have a privileged route to get citizenship rights (they don't even get that chance I had at 18 to ask for my right, they're authomaticly excluded).If you want me to tell you more about the kind of work we do, I will.Medhin, who actually got an american visa because of her now italian passport (It only took me 18 years!)\u00a0\u00a0\u00a0l\u00a0\u00a0\u00a0\u00a0","comment_id":"3328","post_id":"1062","user_id":"441","parent_comment_id":"2140","creation_date":"Thursday, May 10, 2012 - 03:22","group_id":"5954"}},{"node":{"title":"Mischief","content":"Medhin, maybe Vinay suggested this in mischief: the European Court of Human Rights is actually operated by the Council of Europe. I see it from my office's window, and you yourself will walk past it to come to the Edgeryders conference!\u00a0I would suggest to enrich the mission report with a couple of links, perhaps?","comment_id":"3315","post_id":"1062","user_id":"34","parent_comment_id":"2140","creation_date":"Wednesday, May 9, 2012 - 23:56","group_id":"5954"}},{"node":{"title":"Mischief","content":"Medhin, maybe Vinay suggested this in mischief: the European Court of Human Rights is actually operated by the Council of Europe. I see it from my office's window, and you yourself will walk past it to come to the Edgeryders conference!\u00a0I would suggest to enrich the mission report with a couple of links, perhaps?","comment_id":"3315","post_id":"1062","user_id":"34","parent_comment_id":"2140","creation_date":"Wednesday, May 9, 2012 - 23:56","group_id":"5954"}},{"node":{"title":"+150 for great content","content":"Carlien, I am re-reading this and I really think it is one of the better mission reports on the past month. I am awarding you +150 reputation in gratitude for honesty and clarity.","comment_id":"3311","post_id":"1056","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 23:37","group_id":"5954"}},{"node":{"title":"+150 for great content","content":"Carlien, I am re-reading this and I really think it is one of the better mission reports on the past month. I am awarding you +150 reputation in gratitude for honesty and clarity.","comment_id":"3311","post_id":"1056","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 23:37","group_id":"5954"}},{"node":{"title":"Hello Medhin,\u00a0\nI really liked","content":"Hello Medhin,\u00a0I really liked your story and this project... It's funny because the last 2-3 years (and specially just before the national elections in Greece) they were a tons of discussions about the immigration and the 2nd generation immigrants. In Greece it's very difficult to get the Greek nationality even if you are born and raised in the country. I like the support and that Rete G2 seems to give to people. Do you provide kind of membership for the people who want to join or it is \"free use\"? Do you have any co operations with other countries as well?Some months ago, another Edgeryder Alessandra posted this mission report about\u00a0Liberaparola and free Italian courses to immigrants. I don't know if you are aware of it or you have already read but I found it quite interesting and inspiring specially for a Greek person as me living abroad ...\u00a0","comment_id":"3308","post_id":"1062","user_id":"2122","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 23:19","group_id":"5954"}},{"node":{"title":"Hello Medhin,\u00a0\nI really liked","content":"Hello Medhin,\u00a0I really liked your story and this project... It's funny because the last 2-3 years (and specially just before the national elections in Greece) they were a tons of discussions about the immigration and the 2nd generation immigrants. In Greece it's very difficult to get the Greek nationality even if you are born and raised in the country. I like the support and that Rete G2 seems to give to people. Do you provide kind of membership for the people who want to join or it is \"free use\"? Do you have any co operations with other countries as well?Some months ago, another Edgeryder Alessandra posted this mission report about\u00a0Liberaparola and free Italian courses to immigrants. I don't know if you are aware of it or you have already read but I found it quite interesting and inspiring specially for a Greek person as me living abroad ...\u00a0","comment_id":"3308","post_id":"1062","user_id":"2122","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 23:19","group_id":"5954"}},{"node":{"title":"Hang on, how does this work now?","content":"So I don't understand the situation.In America (where I'm most familiar with immigration laws, even though I'm British) if you are born in America, you're a US Citizen, period.It doesn't work that way in Italy, I guess? You're dealing with people who's parents were Italian permanent residents on immigrant visas, and their kids are left without any status in Italy?That's so strange, I almost can't imagine it hasn't been through the European human rights courts!Could you tell us a bit more about how the system works today, and (at a technical level) what the changes you would like to see are?Vinay, who's half-Indian, half-Scottish, and didn't *quite* manage to get an American visa...","comment_id":"3297","post_id":"1062","user_id":"342","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 21:38","group_id":"5954"}},{"node":{"title":"Hang on, how does this work now?","content":"So I don't understand the situation.In America (where I'm most familiar with immigration laws, even though I'm British) if you are born in America, you're a US Citizen, period.It doesn't work that way in Italy, I guess? You're dealing with people who's parents were Italian permanent residents on immigrant visas, and their kids are left without any status in Italy?That's so strange, I almost can't imagine it hasn't been through the European human rights courts!Could you tell us a bit more about how the system works today, and (at a technical level) what the changes you would like to see are?Vinay, who's half-Indian, half-Scottish, and didn't *quite* manage to get an American visa...","comment_id":"3297","post_id":"1062","user_id":"342","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 21:38","group_id":"5954"}},{"node":{"title":"Social capital and mixe identy....","content":"Medhin, thanks for sharing this story.You see I'm trying to figure out how to relate to the space myself. Mixed, hybrid, multiple....whatever you call them, identities. There are several posts in here that somehow brush on the different facets Andrei has written a beautiful post about mixed identities and violent conflict\u00a0 in Transnistria while Decida has written about her 2Faced1 project- a creative play with how we fear and want to be percieved by others. One of the things I admire about the way you all three communicate around the topics is that they don't feel like they are reinforcing structural catgorisations. Which then become prisons you can't get out of. How did you, G2, actually get started talking about this stuff? and what do you think was a tipping point for it to have become cool?\u00a0\u00a0","comment_id":"3296","post_id":"1062","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 21:33","group_id":"5954"}},{"node":{"title":"Social capital and mixe identy....","content":"Medhin, thanks for sharing this story.You see I'm trying to figure out how to relate to the space myself. Mixed, hybrid, multiple....whatever you call them, identities. There are several posts in here that somehow brush on the different facets Andrei has written a beautiful post about mixed identities and violent conflict\u00a0 in Transnistria while Decida has written about her 2Faced1 project- a creative play with how we fear and want to be percieved by others. One of the things I admire about the way you all three communicate around the topics is that they don't feel like they are reinforcing structural catgorisations. Which then become prisons you can't get out of. How did you, G2, actually get started talking about this stuff? and what do you think was a tipping point for it to have become cool?\u00a0\u00a0","comment_id":"3296","post_id":"1062","user_id":"45","parent_comment_id":"0","creation_date":"Wednesday, May 9, 2012 - 21:33","group_id":"5954"}},{"node":{"title":"Hmmm","content":"Interesting insight. Let me rephrase: finance is designed for trolls and greedy people. Therefore... interesting.Did you know that there are at least 5-6 people in Edgeryders who are actually involved in designing currencies? See for example this mission by Matthias in Germany. Lots of interesting comments! You will see some from Jacky in Iceland: he has a mission of his own from which it is clear that he has spent a great deal of time looking at money supply statistics worldwide. Interesting bunch!","comment_id":"3205","post_id":"1056","user_id":"34","parent_comment_id":"2043","creation_date":"Saturday, May 5, 2012 - 09:58","group_id":"5954"}},{"node":{"title":"Hmmm","content":"Interesting insight. Let me rephrase: finance is designed for trolls and greedy people. Therefore... interesting.Did you know that there are at least 5-6 people in Edgeryders who are actually involved in designing currencies? See for example this mission by Matthias in Germany. Lots of interesting comments! You will see some from Jacky in Iceland: he has a mission of his own from which it is clear that he has spent a great deal of time looking at money supply statistics worldwide. Interesting bunch!","comment_id":"3205","post_id":"1056","user_id":"34","parent_comment_id":"2043","creation_date":"Saturday, May 5, 2012 - 09:58","group_id":"5954"}},{"node":{"title":"superficial","content":"Hi Roberto, I recognize the superficial aspect. I never got the idea that my family was very involved with the spiritual ideas behind the catholic religion. For them it was just a way of life to pay lip service to religion. That makes is even more startling that my parents and their brothers & sisters all structured their lifes , including something so private as the choice for a partner in life, within the boundaries of what their religion prescribes. It is not like in Italy that everybody was catholic. There were also lots of protestants families living in the same villages. They knew each other very well, but they didn't live together. And from a certain point of view it worked very well, the communities were living peacefully next to each other for hundred of years. Sure, after the Reformation took place the protestant religion was the only religion which was accepted and the catholics had to go underground. But even that worked out pretty well because no one was bothering them. From a societal point of view the Dutch did very well in being so tolerant. On the other hand, the decisions of the regents at the end of the 16th century very much affected the lifes of individuals even almost 400 years later.\u00a0And when you think about the crisis in our current economic system, we have to remember that most of the current system is based on financial innovations which were done in the beginning of the 17th century. The dominant belief then was that people were selfish and only behaved themselves in a proper way because of the fear for God. The religion thing we have settled in the last decennia, at least in most western countries. The thing about people being selfish we have to re-examine again in order to get the economic problems fixed. Enough stuff to write about in future missions!","comment_id":"3204","post_id":"1056","user_id":"402","parent_comment_id":"2037","creation_date":"Saturday, May 5, 2012 - 08:53","group_id":"5954"}},{"node":{"title":"superficial","content":"Hi Roberto, I recognize the superficial aspect. I never got the idea that my family was very involved with the spiritual ideas behind the catholic religion. For them it was just a way of life to pay lip service to religion. That makes is even more startling that my parents and their brothers & sisters all structured their lifes , including something so private as the choice for a partner in life, within the boundaries of what their religion prescribes. It is not like in Italy that everybody was catholic. There were also lots of protestants families living in the same villages. They knew each other very well, but they didn't live together. And from a certain point of view it worked very well, the communities were living peacefully next to each other for hundred of years. Sure, after the Reformation took place the protestant religion was the only religion which was accepted and the catholics had to go underground. But even that worked out pretty well because no one was bothering them. From a societal point of view the Dutch did very well in being so tolerant. On the other hand, the decisions of the regents at the end of the 16th century very much affected the lifes of individuals even almost 400 years later.\u00a0And when you think about the crisis in our current economic system, we have to remember that most of the current system is based on financial innovations which were done in the beginning of the 17th century. The dominant belief then was that people were selfish and only behaved themselves in a proper way because of the fear for God. The religion thing we have settled in the last decennia, at least in most western countries. The thing about people being selfish we have to re-examine again in order to get the economic problems fixed. Enough stuff to write about in future missions!","comment_id":"3204","post_id":"1056","user_id":"402","parent_comment_id":"2037","creation_date":"Saturday, May 5, 2012 - 08:53","group_id":"5954"}},{"node":{"title":"Indeed","content":"Wow, Carlien, thank you for sharing this. I had never thought of backtracking to the religion wars period in Europe to look for the sources of our own ways of life! This might be because religion was always a non-issue in my native Italy: people are Catholic, full stop.Now, Catholics come in all sizes and shapes, but that was always assumed to be OK (-ish): just like William of Orange's contemporaries, the Catholic church wants people to observe certain formalities and pay lip service to religion, but it does not actually demand that they really spend their time communing with God and all that. Catholics have a pretty sophisticated way to deal with wayward sheep in the flock: it consists of administering God's forgiveness for one's sins. The price you pay for that, of course, is abiding the formality of the administering: only priests can get God to grant forgiveness, you can't get it on your own. It is very hard to argue seriously with people like that! No, \"three strikes, you are out\", it's almost impossible to get kicked out of the religion. Whatever criticism you come up with, very smart priests will happily agree with you and then tell you that your very critique proves that you are engaged with religion, and therefore, to some extent, religious.\u00a0Being anything other than superficial Catholics in Italy is so hard that most people don't even make the effort. Consequence: to this day, most weddings happen between (nominal) Catholics.\u00a0But you are absolutely right: if we tell people they are selfish, they will behave selfishly. Online community managers like to say \"if you design your system for trolls, your users will be trolls\" (though to be fair they think troll-designed systems\u00a0attract\u00a0trolls, they don't turn non-troll users into trolls).","comment_id":"3199","post_id":"1056","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, May 5, 2012 - 01:24","group_id":"5954"}},{"node":{"title":"Indeed","content":"Wow, Carlien, thank you for sharing this. I had never thought of backtracking to the religion wars period in Europe to look for the sources of our own ways of life! This might be because religion was always a non-issue in my native Italy: people are Catholic, full stop.Now, Catholics come in all sizes and shapes, but that was always assumed to be OK (-ish): just like William of Orange's contemporaries, the Catholic church wants people to observe certain formalities and pay lip service to religion, but it does not actually demand that they really spend their time communing with God and all that. Catholics have a pretty sophisticated way to deal with wayward sheep in the flock: it consists of administering God's forgiveness for one's sins. The price you pay for that, of course, is abiding the formality of the administering: only priests can get God to grant forgiveness, you can't get it on your own. It is very hard to argue seriously with people like that! No, \"three strikes, you are out\", it's almost impossible to get kicked out of the religion. Whatever criticism you come up with, very smart priests will happily agree with you and then tell you that your very critique proves that you are engaged with religion, and therefore, to some extent, religious.\u00a0Being anything other than superficial Catholics in Italy is so hard that most people don't even make the effort. Consequence: to this day, most weddings happen between (nominal) Catholics.\u00a0But you are absolutely right: if we tell people they are selfish, they will behave selfishly. Online community managers like to say \"if you design your system for trolls, your users will be trolls\" (though to be fair they think troll-designed systems\u00a0attract\u00a0trolls, they don't turn non-troll users into trolls).","comment_id":"3199","post_id":"1056","user_id":"34","parent_comment_id":"0","creation_date":"Saturday, May 5, 2012 - 01:24","group_id":"5954"}},{"node":{"title":"Ahead of its time","content":"We had a few exhibitions, and each time we exhibited, people brought us more computers. Being artists, we made them into \"an art installation\". (Other people might think, with some justification, that what we had made was was just \"a huge pile\".)This is what I like about the art that takes the shape of \"pile of stuff\" etc.: it makes people think, provokes them, calls them to action, like to add another computer as they did. And finally something very useful can emerge from all this that is ahead if its time: hackerspaces and fab labs weren't much around in 2000 when you founded Access Space, were they. The arts people found a way to start such a project even when the idea wasn't ripe for \"regular\", business and technical type innovation. Thanks, folks! :)","comment_id":"3113","post_id":"1272","user_id":"36","parent_comment_id":"0","creation_date":"Tuesday, May 1, 2012 - 12:59","group_id":"734"}},{"node":{"title":"Health care and social care ","content":"Hi James, I wasn\u00b4t sure what you meant by, or why you distinguished between health care and social care so I looked them up on wikipedia:\"Health care (or healthcare) is the diagnosis, treatment, and prevention of disease, illness, injury, and other physical and mental impairments in humans. Health care is delivered by practitioners in medicine, chiropractic, dentistry, nursing, pharmacy, allied health, and other care providers. It refers to the work done in providing primary care, secondary care and tertiary care, as well as in public health.\"\"Social care in the United Kingdom is defined as the provision of social work, personal care, protection or social support services to children or adults in need or at risk, or adults with needs arising from illness, disability, old age or poverty and their families and carers. That provision may have one or more of the following aims: to protect people who use care services, to preserve or advance physical or mental health, to promote independence and social inclusion, to improve opportunities and life chances, to strengthen families and to protect human rights in relation to people's social needs.[1\"I wonder how much of what healthcare costs is preventible and how much is unavoidable. And how much, as well as which parts in particular, of the diagnosis, treatment and prevention work needs to be done by professionals and why?","comment_id":"2887","post_id":"998","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, April 19, 2012 - 14:10","group_id":"5954"}},{"node":{"title":"Health care and social care ","content":"Hi James, I wasn\u00b4t sure what you meant by, or why you distinguished between health care and social care so I looked them up on wikipedia:\"Health care (or healthcare) is the diagnosis, treatment, and prevention of disease, illness, injury, and other physical and mental impairments in humans. Health care is delivered by practitioners in medicine, chiropractic, dentistry, nursing, pharmacy, allied health, and other care providers. It refers to the work done in providing primary care, secondary care and tertiary care, as well as in public health.\"\"Social care in the United Kingdom is defined as the provision of social work, personal care, protection or social support services to children or adults in need or at risk, or adults with needs arising from illness, disability, old age or poverty and their families and carers. That provision may have one or more of the following aims: to protect people who use care services, to preserve or advance physical or mental health, to promote independence and social inclusion, to improve opportunities and life chances, to strengthen families and to protect human rights in relation to people's social needs.[1\"I wonder how much of what healthcare costs is preventible and how much is unavoidable. And how much, as well as which parts in particular, of the diagnosis, treatment and prevention work needs to be done by professionals and why?","comment_id":"2887","post_id":"998","user_id":"45","parent_comment_id":"0","creation_date":"Thursday, April 19, 2012 - 14:10","group_id":"5954"}},{"node":{"title":"A commons? Yes.","content":"Hey James,\u00a0speaking as an economist (and relatively fresh from reading The Book on commons, i.e. Ostrom's Governing the Commons), I would like to try to address your first question. Health care is probably not a commons. A public heanth care\u00a0system\u00a0like the NHS, on the other hand, probably is.\u00a0Here is the reasoning. For a resource to be a commons, you need two conditions to hold. Both are properties of its consumption.consumption must be rivalrous: if I consume one unit of the resource, you cannot consume the same unit.consumption must be non-excludable: it must be impossible or very expensive to prevent someone from unduly consuming units of the resource.Wikipedia has a useful matrix that classifies goods into private, public, common and club according to the properties of their consumption:\u00a0http:\/\/en.wikipedia.org\/wiki\/Public_goodNow to health care. In a private system, health care is rivalrous and excludable (you can only access doctors and hospitals if you have the money to pay for their services. However, a system like the NHS is designed to be non-excludable, so it becomes a commons. We all pay into it, it can come under strain if too many people use it at the same time, but we can't easily stop others from accessing it, even incorrectly. an often cited case is that of elderly and lonely people with a lot of time on their hands and hypocondriac tendencies, who go to see their doctor almost every day - and this increases the number of doctors needed to serve everybody.","comment_id":"2853","post_id":"998","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 18, 2012 - 23:02","group_id":"5954"}},{"node":{"title":"A commons? Yes.","content":"Hey James,\u00a0speaking as an economist (and relatively fresh from reading The Book on commons, i.e. Ostrom's Governing the Commons), I would like to try to address your first question. Health care is probably not a commons. A public heanth care\u00a0system\u00a0like the NHS, on the other hand, probably is.\u00a0Here is the reasoning. For a resource to be a commons, you need two conditions to hold. Both are properties of its consumption.consumption must be rivalrous: if I consume one unit of the resource, you cannot consume the same unit.consumption must be non-excludable: it must be impossible or very expensive to prevent someone from unduly consuming units of the resource.Wikipedia has a useful matrix that classifies goods into private, public, common and club according to the properties of their consumption:\u00a0http:\/\/en.wikipedia.org\/wiki\/Public_goodNow to health care. In a private system, health care is rivalrous and excludable (you can only access doctors and hospitals if you have the money to pay for their services. However, a system like the NHS is designed to be non-excludable, so it becomes a commons. We all pay into it, it can come under strain if too many people use it at the same time, but we can't easily stop others from accessing it, even incorrectly. an often cited case is that of elderly and lonely people with a lot of time on their hands and hypocondriac tendencies, who go to see their doctor almost every day - and this increases the number of doctors needed to serve everybody.","comment_id":"2853","post_id":"998","user_id":"34","parent_comment_id":"0","creation_date":"Wednesday, April 18, 2012 - 23:02","group_id":"5954"}},{"node":{"title":"The co-housing expert","content":"Simone, here on Edgeryders, is the chairperson of the first really successful co-housing scheme in Italy. This is his story: I suggest you get in touch, I know hime personally and he is a very nice, helpful personal.\u00a0","comment_id":"2700","post_id":"984","user_id":"34","parent_comment_id":"1497","creation_date":"Saturday, April 14, 2012 - 12:37","group_id":"5954"}},{"node":{"title":"The co-housing expert","content":"Simone, here on Edgeryders, is the chairperson of the first really successful co-housing scheme in Italy. This is his story: I suggest you get in touch, I know hime personally and he is a very nice, helpful personal.\u00a0","comment_id":"2700","post_id":"984","user_id":"34","parent_comment_id":"1497","creation_date":"Saturday, April 14, 2012 - 12:37","group_id":"5954"}},{"node":{"title":"Cooperative housing is a solution","content":"(I think).I neither know or interact with my neighbours.This is wrong, I always thought it is deeply wrong.Co-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?","comment_id":"2699","post_id":"984","user_id":"2368","parent_comment_id":"1495","creation_date":"Saturday, April 14, 2012 - 12:12","group_id":"5954"}},{"node":{"title":"Cooperative housing is a solution","content":"(I think).I neither know or interact with my neighbours.This is wrong, I always thought it is deeply wrong.Co-operative housing would also need a different architecture ...don't you think space should be also conceived in a different way ?","comment_id":"2699","post_id":"984","user_id":"2368","parent_comment_id":"1495","creation_date":"Saturday, April 14, 2012 - 12:12","group_id":"5954"}},{"node":{"title":"I think I just used an","content":"I think I just used an obvious alternative family as an example there :)\u00a0As for keeping an alternative family together, I think this is where co-operative housing may come in. I know very little about the concept, but to live close by, or even in the same apartment block might be a good answer. I know this may sound like just being neighbours but the thing with moving away from a community for most young people is they rarely know their neighbours. The man who lives in the flat above me I have seen once in 6 months - neighbourliness is something that is becoming rare, so re-creating close communities with plenty of involvement with friends might create family relationships that work?\u00a0","comment_id":"2697","post_id":"984","user_id":"444","parent_comment_id":"1490","creation_date":"Saturday, April 14, 2012 - 12:02","group_id":"5954"}},{"node":{"title":"I think I just used an","content":"I think I just used an obvious alternative family as an example there :)\u00a0As for keeping an alternative family together, I think this is where co-operative housing may come in. I know very little about the concept, but to live close by, or even in the same apartment block might be a good answer. I know this may sound like just being neighbours but the thing with moving away from a community for most young people is they rarely know their neighbours. The man who lives in the flat above me I have seen once in 6 months - neighbourliness is something that is becoming rare, so re-creating close communities with plenty of involvement with friends might create family relationships that work?\u00a0","comment_id":"2697","post_id":"984","user_id":"444","parent_comment_id":"1490","creation_date":"Saturday, April 14, 2012 - 12:02","group_id":"5954"}},{"node":{"title":"Alternative family","content":"I agree with all your proposals, but I was talking about alternative families for hetero people, people who are attracted to the opposite sex, but didn't meet yet the right partner.These people can't use the same sex marriage solution.Friends are great if they are friends for life. But how can you actually make them stay\u00a0 for life...because friends might decide one day to build their own family, so at that point they will be less present ...How to make it work ?","comment_id":"2692","post_id":"984","user_id":"2368","parent_comment_id":"1463","creation_date":"Saturday, April 14, 2012 - 11:42","group_id":"5954"}},{"node":{"title":"Alternative family","content":"I agree with all your proposals, but I was talking about alternative families for hetero people, people who are attracted to the opposite sex, but didn't meet yet the right partner.These people can't use the same sex marriage solution.Friends are great if they are friends for life. But how can you actually make them stay\u00a0 for life...because friends might decide one day to build their own family, so at that point they will be less present ...How to make it work ?","comment_id":"2692","post_id":"984","user_id":"2368","parent_comment_id":"1463","creation_date":"Saturday, April 14, 2012 - 11:42","group_id":"5954"}},{"node":{"title":"Oh I don't speak from any","content":"Oh I don't speak from any knowledge of the subject, but merely from my own understanding\/upbringing\/desire. To me, a home just represents a strong sense of belonging. I've been renting now for nearly a decade and it would be nice to know that my rent isn't paying someone else's mortgage.I would like to learn more about co-operative housing and how that works as it is probably something that I will understand as a good thing for my life and others and I fully realise that a homw of your own isn't the be all and end all of families.","comment_id":"2673","post_id":"984","user_id":"444","parent_comment_id":"1468","creation_date":"Friday, April 13, 2012 - 14:22","group_id":"5954"}},{"node":{"title":"Oh I don't speak from any","content":"Oh I don't speak from any knowledge of the subject, but merely from my own understanding\/upbringing\/desire. To me, a home just represents a strong sense of belonging. I've been renting now for nearly a decade and it would be nice to know that my rent isn't paying someone else's mortgage.I would like to learn more about co-operative housing and how that works as it is probably something that I will understand as a good thing for my life and others and I fully realise that a homw of your own isn't the be all and end all of families.","comment_id":"2673","post_id":"984","user_id":"444","parent_comment_id":"1468","creation_date":"Friday, April 13, 2012 - 14:22","group_id":"5954"}},{"node":{"title":"The old man in the room","content":"Hold your horses. As the old man in this corner of the Edgeryders community, I feel it is my duty to say that the vast majority of people lived in rented dwellings up until the 1980s (in most European countries but not in America). The idea of mass ownership of homes was, according to historians, Thatcher's: she wanted more people to be ideologically tied in with the haves, or something to that effect. Apparently, her administration thought\u00a0 that a society of home owners would be more invested (literally) in the status quo. They turned out to be mostly right.Anyway, my point is that before that time people did have families, and they did not feel particularly flaky, quite the contrary. So I would submit that the perceived stability of a familial arrangement has little to do with home ownership. Maybe an important factor is, rather, the rigidity of the agreement that binds it members together: practically indestructible in the case of parent-to-offspring, solid but less committal in\u00a0 that of sibling-to-sibling, more instable in that of life partner-to-life partner, and even more in that of the housemate-to-housemate.","comment_id":"2671","post_id":"984","user_id":"34","parent_comment_id":"1433","creation_date":"Friday, April 13, 2012 - 13:52","group_id":"5954"}},{"node":{"title":"The old man in the room","content":"Hold your horses. As the old man in this corner of the Edgeryders community, I feel it is my duty to say that the vast majority of people lived in rented dwellings up until the 1980s (in most European countries but not in America). The idea of mass ownership of homes was, according to historians, Thatcher's: she wanted more people to be ideologically tied in with the haves, or something to that effect. Apparently, her administration thought\u00a0 that a society of home owners would be more invested (literally) in the status quo. They turned out to be mostly right.Anyway, my point is that before that time people did have families, and they did not feel particularly flaky, quite the contrary. So I would submit that the perceived stability of a familial arrangement has little to do with home ownership. Maybe an important factor is, rather, the rigidity of the agreement that binds it members together: practically indestructible in the case of parent-to-offspring, solid but less committal in\u00a0 that of sibling-to-sibling, more instable in that of life partner-to-life partner, and even more in that of the housemate-to-housemate.","comment_id":"2671","post_id":"984","user_id":"34","parent_comment_id":"1433","creation_date":"Friday, April 13, 2012 - 13:52","group_id":"5954"}},{"node":{"title":"An idea I've been thinking","content":"An idea I've been thinking about in keeping alternative families together is to give them the same basic rights that a 'nuclear' family would have. An example from a UK perspective is to allow same sex marriages. Yes, we have civil partnerships which allows the same legal aspects of marriage, but is still not recognised as marriage as it is not performed in church, and therein, any family surrounding that union will be treated differently in some way or another. Everyone should have equal rights in order for families to blossom.\nAs for friendships, I know what friendships in my life are ones that I will still have when I'm much older, and as such, are very much part of the family I have created for myself. These friends would also recognise the same for me, and I think that creates bonds that would be near impossible to break, regardless of blood. There's a saying that 'friends are the family we choose for ourselves' and that is very true. How we create a familial bond in terms of law and social policy, I'm not entirely sure of yet but would love to look in to it.","comment_id":"2666","post_id":"984","user_id":"444","parent_comment_id":"1449","creation_date":"Friday, April 13, 2012 - 12:50","group_id":"5954"}},{"node":{"title":"An idea I've been thinking","content":"An idea I've been thinking about in keeping alternative families together is to give them the same basic rights that a 'nuclear' family would have. An example from a UK perspective is to allow same sex marriages. Yes, we have civil partnerships which allows the same legal aspects of marriage, but is still not recognised as marriage as it is not performed in church, and therein, any family surrounding that union will be treated differently in some way or another. Everyone should have equal rights in order for families to blossom.\nAs for friendships, I know what friendships in my life are ones that I will still have when I'm much older, and as such, are very much part of the family I have created for myself. These friends would also recognise the same for me, and I think that creates bonds that would be near impossible to break, regardless of blood. There's a saying that 'friends are the family we choose for ourselves' and that is very true. How we create a familial bond in terms of law and social policy, I'm not entirely sure of yet but would love to look in to it.","comment_id":"2666","post_id":"984","user_id":"444","parent_comment_id":"1449","creation_date":"Friday, April 13, 2012 - 12:50","group_id":"5954"}},{"node":{"title":"Alternative family","content":"I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family\u00a0 consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended\/alternative families.","comment_id":"2652","post_id":"984","user_id":"2368","parent_comment_id":"1418","creation_date":"Friday, April 13, 2012 - 08:53","group_id":"5954"}},{"node":{"title":"Alternative family","content":"I totally agree with you ...the question is how do you keep this alternative family united ? How do you give these people a sense of belonging and identity ? And how do you know that the members of this family\u00a0 consider you a relative at their turn (even if there are no blood ties) and not a mere friend ? These are questions I've been thinking of for a while now as I am also a supporter of extended\/alternative families.","comment_id":"2652","post_id":"984","user_id":"2368","parent_comment_id":"1418","creation_date":"Friday, April 13, 2012 - 08:53","group_id":"5954"}},{"node":{"title":"I think the moralistic","content":"I think the moralistic purpose of family is very much ingrained to the way the conservative party think on the whole, which is why it's so obvious at the moment. Although I'm not about to start wading in to politics and bitching about the current government - tempting though it may be :)It probably isn't necessary to own a home, but I'm just coming from my own personal knowledge of how I grew up, and how stressful I find not having a permanent residence. The flat I am in now is wonderful, as is my flatmate, but to have the comfort of a home that is your own that won't be taken from you must allow more risks to be taken elsewhere, knowing that you will have a home to return to - but again not necessary, just speaking from personal desires\/experience.","comment_id":"2641","post_id":"984","user_id":"444","parent_comment_id":"1433","creation_date":"Thursday, April 12, 2012 - 21:21","group_id":"5954"}},{"node":{"title":"I think the moralistic","content":"I think the moralistic purpose of family is very much ingrained to the way the conservative party think on the whole, which is why it's so obvious at the moment. Although I'm not about to start wading in to politics and bitching about the current government - tempting though it may be :)It probably isn't necessary to own a home, but I'm just coming from my own personal knowledge of how I grew up, and how stressful I find not having a permanent residence. The flat I am in now is wonderful, as is my flatmate, but to have the comfort of a home that is your own that won't be taken from you must allow more risks to be taken elsewhere, knowing that you will have a home to return to - but again not necessary, just speaking from personal desires\/experience.","comment_id":"2641","post_id":"984","user_id":"444","parent_comment_id":"1433","creation_date":"Thursday, April 12, 2012 - 21:21","group_id":"5954"}},{"node":{"title":"avoiding categories","content":"Hey MissyK8, \nThank you for your post, you're raising many really varied and interesting points!\u00a0With the huge explosion of alternatives, family life can't possibly stay the same, and should\u00a0not be defined in categories and tax brackets. Unfortunately that's what governments do, sometimes simply for ease of administration.. but I agree in the UK's case for some horribly twisted moralistic purpose that I personally find a bit too removed from reality.\nIs it really necessary to own a house to have a family though? I think family life can be based on insecure and treacherous foundations, provided the family members can create a certain resilience to that very uncertainty... I'm not speaking from experience though!! Anyone out there?\nKeep well!","comment_id":"2636","post_id":"984","user_id":"257","parent_comment_id":"0","creation_date":"Thursday, April 12, 2012 - 18:09","group_id":"5954"}},{"node":{"title":"avoiding categories","content":"Hey MissyK8, \nThank you for your post, you're raising many really varied and interesting points!\u00a0With the huge explosion of alternatives, family life can't possibly stay the same, and should\u00a0not be defined in categories and tax brackets. Unfortunately that's what governments do, sometimes simply for ease of administration.. but I agree in the UK's case for some horribly twisted moralistic purpose that I personally find a bit too removed from reality.\nIs it really necessary to own a house to have a family though? I think family life can be based on insecure and treacherous foundations, provided the family members can create a certain resilience to that very uncertainty... I'm not speaking from experience though!! Anyone out there?\nKeep well!","comment_id":"2636","post_id":"984","user_id":"257","parent_comment_id":"0","creation_date":"Thursday, April 12, 2012 - 18:09","group_id":"5954"}},{"node":{"title":"I would find it hard to","content":"I would find it hard to describe what my ideal family situation would be - it would almost\u00a0certainly be based on friends having more input\u00a0in to my\u00a0way of life rather than just a partner, and it would\u00a0involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid\u00a0idea.\u00a0In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.","comment_id":"2621","post_id":"984","user_id":"444","parent_comment_id":"1415","creation_date":"Thursday, April 12, 2012 - 14:14","group_id":"5954"}},{"node":{"title":"I would find it hard to","content":"I would find it hard to describe what my ideal family situation would be - it would almost\u00a0certainly be based on friends having more input\u00a0in to my\u00a0way of life rather than just a partner, and it would\u00a0involve people of all ages. I think what's important, especially where forming policy around family matters is concerned, that the idea of family is a much more fluid\u00a0idea.\u00a0In the UK, our current government are very pro-family, getting married, very traditional way of thinking, and this fuels their policies, so people in alternative families are being ignored which isn't right. I think as long as whatever family you have, regardless of its make up is one full of love, support, and one that is educational and wonderful to be a part of, and if that's a husband, wife and kids, so be it, but that can come in whatever form you like.","comment_id":"2621","post_id":"984","user_id":"444","parent_comment_id":"1415","creation_date":"Thursday, April 12, 2012 - 14:14","group_id":"5954"}},{"node":{"title":"So how is your new type of family like?","content":"Is is based on friends or ...more than one life partner...or young people only ? I am really curios to learn & know !","comment_id":"2618","post_id":"984","user_id":"2368","parent_comment_id":"0","creation_date":"Thursday, April 12, 2012 - 13:10","group_id":"5954"}},{"node":{"title":"So how is your new type of family like?","content":"Is is based on friends or ...more than one life partner...or young people only ? I am really curios to learn & know !","comment_id":"2618","post_id":"984","user_id":"2368","parent_comment_id":"0","creation_date":"Thursday, April 12, 2012 - 13:10","group_id":"5954"}},{"node":{"title":"join us!","content":"Hi James! This project is great! And I'm happy to read it and find you now because on Edgeryders we want open a space to discuss about how we can translate the intangible social, cultural, creative value to a tangible market one?look at this link to read more about the proposalhttp:\/\/edgeryders.ppa.coe.int\/shine-some-light\/mission_case\/what-value-cultural-productionThere a lot of Edegryders who have similar experiences with collaborative processes, free and open culture, research of financial aid for creative and social projects often defined \"cool, but too innovative\", with a poor market value also if the cultural, social, creative value is very high.Are you interested? I hope so! :)","comment_id":"2370","post_id":"1272","user_id":"391","parent_comment_id":"0","creation_date":"Thursday, March 22, 2012 - 15:10","group_id":"734"}},{"node":{"title":"Amazing stuff","content":"Hello James, I am Alberto and I actually used to run a nationwide community of 3.000 creatives working on 400+ projects \u00a0- while working for the government in my country, Italy. All I can think of is how cool would have been to have you in there!This is great, really. And replicable! And the attitude makes so much sense:Working as an artist, I saw that the city was failing to adapt to the emerging information economyI suppose most people would go \"Say what?\" when they read this line. :-)As an economist, let me go through what I love about this:(social, in your case) innovation is in seeing the world with new eyes as opposed to making a gizmo. You noticed an abundance of old computers in the midst of a failure to ramp up with the digital economy in Sheffield; the whole things grows out of an art project, then of a training program, so you think\u00a0way\u00a0out of the box with respect to how, say an innovation economist would.cheap space enables trying out stuff. There is a clear conflict between the interest of innovators and those of real estate owners. This is surfacing in other mission reports on Egderyders as well.skill, expertise and creativity are the scarce resources of development.fundraising is painfully slow.European grants actually helped (WOW!) but only because someone sheltered you from a \"frightening\" level of bureaucracy (BOO).\u00a0peer-to-peer help beats the living daylight out of top down teaching.communities with a purpose are very diverse.the video is great :-)I am very unimportant, but I will help you if I can. Meanwhile, let me ask you this: how much did you have to raise to get the warehouse going in 1998? Who did it, and how? And the same again for the next step of opening Access Space in 2000: how much, who did it and how?","comment_id":"2320","post_id":"1272","user_id":"34","parent_comment_id":"0","creation_date":"Tuesday, March 13, 2012 - 21:50","group_id":"734"}}]}