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Data Submission:
- Only anonymized EEG datasets related to narcolepsy research will be accepted.
- Contributors must ensure that appropriate consent has been obtained for data sharing and that all ethical considerations regarding data privacy and patient confidentiality have been addressed.
- Datasets should include relevant metadata, such as patient demographics, clinical information, recording protocols, and any other contextual details necessary for understanding the data.
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Quality Control:
- Submitted datasets will undergo a quality control process to ensure the integrity and reliability of the data.
- Quality control may involve checking for artifacts, noise, and other factors that may affect the accuracy of narcolepsy classification.
- Contributors are encouraged to provide documentation or descriptions of preprocessing steps applied to the data to facilitate transparency and reproducibility.
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Data Accessibility:
- The repository will strive to make data openly accessible to the community, encouraging collaboration and sharing of findings.
- Data will be stored in standard formats, such as EDF or BDF, to facilitate compatibility and ease of use by researchers.
- Whenever possible, open licenses will be encouraged to maximize the potential for reuse and future research.
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Metadata Standards:
- Contributors are encouraged to provide comprehensive metadata along with their datasets.
- Standardized metadata fields will be defined to ensure consistency and facilitate data discovery and interoperability.
- Metadata should include relevant information about the recording setup, electrode placements, signal characteristics, sleep staging, and any other pertinent details that enhance the usability of the data.
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Version Control and Updates:
- The repository will support version control to track revisions and updates made to the datasets.
- Contributors may submit updated versions of their datasets as new research findings emerge or when significant improvements are made in the data quality or preprocessing methods.
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Collaboration and Acknowledgment:
- The repository encourages collaboration among researchers, clinicians, and data scientists working on narcolepsy research.
- Users are encouraged to acknowledge the original dataset contributors when using the data for research purposes, ensuring proper attribution and recognition.
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Review and Governance:
- The repository will establish a review process to ensure compliance with the curation policy and maintain the quality and relevance of the datasets.
- A governance structure may be established to address any concerns, disputes, or policy updates in the future.
Note: This initial curation policy provides a general framework for the Open EEG Repository for Narcolepsy Research. As the community evolves and grows, additional policies and guidelines may be developed to address emerging needs and challenges.